I 

111TH CONGRESS 

2D SESSION H. R. 4689 

To establish the Office of the National Alzheimer’s Project. 

IN THE HOUSE OF REPRESENTATIVES 

FEBRUARY 25, 2010 

Mr. MARKEY of Massachusetts (for himself and Mr. SMITH of New Jersey) 

introduced the following bill; which was referred to the Committee on Energy and Commerce 

A BILL 

To establish the Office of the National Alzheimer’s Project. 

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled, 

3 SECTION 1. SHORT TITLE. 

4 This Act may be cited as the ‘‘National Alzheimer’s 

5 Project Act’’. 

6 SEC. 2. OFFICE OF THE NATIONAL ALZHEIMER’S PROJECT. 

7 (a) ESTABLISHMENT OF OFFICE.—There is estab8 lished in the Office of the Secretary of Health and Human 

9 Services the Office of the National Alzheimer’s Project 

10 (referred to in this Act as the ‘‘Office’’). 

11 (b) PURPOSE OF THE OFFICE.—The Office shall— 


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1 (1) accelerate the development of treatments 

2 that would prevent, halt, or reverse the course of 

3 Alzheimer’s; 

4 (2) be responsible for the creation and mainte5 nance of an integrated national plan to overcome 

6 Alzheimer’s; 

7 (3) help to coordinate the health care and treat8 ment of citizens with Alzheimer’s; 

9 (4) ensure the inclusion of ethnic and racial 

10 populations at higher risk for Alzheimer’s or least 

11 likely to receive care, in clinical, research, and serv12 ice efforts with the purpose of decreasing health dis13 parities in Alzheimer’s; 

14 (5) coordinate with international bodies to inte15 grate and inform the fight against Alzheimer’s glob16 ally; and 

17 (6) provide information and coordination of Alz18 heimer’s research and services across all Federal 

19 agencies. 

20 (c) DIRECTOR OF THE OFFICE.— 

21 (1) APPOINTMENT.—The President shall ap22 point a Director of the Office. 

23 (2) DUTIES OF THE DIRECTOR.— 

24 (A) IN GENERAL.—The Director of the Of25 fice shall— 


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1 (i) oversee the creation and updating 

2 of the national plan described in subpara3 graph (B); 

4 (ii) use discretionary authority to 

5 evaluate all Federal programs around Alz6 heimer’s, including budget requests and 

7 approvals; and 

8 (iii) prepare and submit to the Presi9 dent the annual budget estimate for the 

10 Office. 

11 (B) NATIONAL PLAN.—The Director of the 

12 Office shall carry out an annual assessment of 

13 the Nation’s progress in preparing for the esca14 lating burden of Alzheimer’s, including both im15 plementation steps and recommendations for 

16 priority actions based on the assessment. 

17 (3) SERVICE BY DIRECTOR.—The Director of 

18 the Office shall serve on the advisory board of the 

19 Office of Science and Technology to promote re20 search efforts into mechanisms to slow and stop the 

21 development of Alzheimer’s for those at risk of de22 veloping the disease. 

23 (d) ADVISORY COUNCIL.— 

24 (1) IN GENERAL.—There is established in the 

25 Office an Advisory Council on Alzheimer’s Research 


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1 and Treatment (referred to in this Act as the ‘‘Advi2 sory Council’’). 

3 (2) MEMBERSHIP.— 

4 (A) FEDERAL MEMBERS.—The Advisory 

5 Council shall be comprised of the following ex6 perts: 

7 (i) A designee of the Centers for Dis8 ease Control and Prevention. 

9 (ii) A designee of the Administration 

10 on Aging. 

11 (iii) A designee of the Centers for 

12 Medicare & Medicaid Services. 

13 (iv) A designee of the Indian Health 

14 Service. 

15 (v) A designee of the Office of the Di16 rector of the National Institutes of Health. 

17 (vi) The Surgeon General. 

18 (vii) A designee of the National 

19 Science Foundation. 

20 (viii) A designee of the Department of 

21 Veterans Affairs. 

22 (B) NON-FEDERAL MEMBERS.—In addi23 tion to the members outlined in subparagraph 

24 (A), the Advisory Council shall include 12 exVerDate Nov 24 2008 06:48 Feb 26, 2010 Jkt 089200 PO 00000 Frm 00004 Fmt 6652 Sfmt 6201 E:\BILLS\H4689.IH H4689

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1 pert members from outside the Federal Govern2 ment, which shall include— 

3 (i) 2 Alzheimer patient advocates; 

4 (ii) 2 Alzheimer caregivers; 

5 (iii) 2 health care providers; 

6 (iv) 2 representatives of State health 

7 departments; 

8 (v) 2 researchers with Alzheimer-re9 lated expertise in basic, translational, clin10 ical, or drug development science; and 

11 (vi) 2 voluntary health association 

12 representatives, including a national Alz13 heimer’s disease organization that funds 

14 research and has demonstrated experience 

15 in care and patient services, and a State16 based advocacy organization that provides 

17 services to families and professionals, in18 cluding information and referral, support 

19 groups, care consultation, education, and 

20 safety services. 

21 (3) MEETINGS.—The Advisory Council shall 

22 meet quarterly and such meetings shall be open to 

23 the public. 

24 (4) ADVICE.—The Advisory Council shall advise 

25 the Director of the Office. 


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1 (5) ANNUAL REPORT.—The Advisory Council 

2 shall provide to the Director of the Office— 

3 (A) recommendations for information to be 

4 included in the annual report to Congress by 

5 the Office; and 

6 (B) an annually updated national plan. 

7 (e) ANNUAL REPORT.—The Director of the Office 

8 shall submit to Congress— 

9 (1) an annual report that includes an evalua10 tion of all nationally and federally funded efforts in 

11 Alzheimer’s research, clinical care, institutional, and 

12 home- and community-based programs and their 

13 outcomes; and 

14 (2) an annually updated national plan. 

15 (f) SUNSET.—The Office shall expire on December 

16 31, 2025. 

Æ 


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