I 

113TH CONGRESS 

2D SESSION H. R. 4351 

To amend the National Alzheimer’s Project Act to require the Director 

of the National Institutes of Health to prepare and submit, directly 

to the President for review and transmittal to Congress, an annual 

budget estimate (including an estimate of the number and type of personnel needs for the Institutes) for the initiatives of the National Institutes of Health pursuant to such Act. 

IN THE HOUSE OF REPRESENTATIVES 

APRIL 1, 2014 

Mr. GUTHRIE (for himself, Mr. TONKO, Mr. SMITH of New Jersey, and Ms. 

WATERS) introduced the following bill; which was referred to the Committee on Energy and Commerce 

A BILL 

To amend the National Alzheimer’s Project Act to require 

the Director of the National Institutes of Health to 

prepare and submit, directly to the President for review 

and transmittal to Congress, an annual budget estimate 

(including an estimate of the number and type of personnel needs for the Institutes) for the initiatives of 

the National Institutes of Health pursuant to such Act. 

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled, 


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1 SECTION 1. SHORT TITLE. 

2 This Act may be cited as the ‘‘Alzheimer’s Account3 ability Act of 2014’’. 

4 SEC. 2. FINDINGS. 

5 The Congress finds as follows: 

6 (1) Alzheimer’s disease is the most expensive 

7 disease in the United States today. Its costs are set 

8 to increase like the costs of no other disease and will 

9 be carried in substantial measure through the Medi10 care and Medicaid programs. 

11 (2) Through the unanimous, bipartisan passage 

12 of the National Alzheimer’s Project Act (Public Law 

13 111–375), the 111th Congress recognized the na14 tional imperative to act and instructed the Nation’s 

15 scientists to develop a plan to change the trajectory 

16 of this disease. 

17 (3) Scientists at the National Institutes of 

18 Health have prepared and presented to Congress a 

19 national plan to prevent and effectively treat Alz20 heimer’s disease by 2025, including the underlying 

21 specification of milestones and timelines to achieve 

22 this goal. 

23 (4) Capital budgeting is a universally accepted 

24 best practice for the successful management of such 

25 a multiyear project, but such projections have not 

26 been prepared and provided to Congress to achieve 


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1 the 2025 goal, preventing Congress from exercising 

2 truly effective oversight over a venture of profound 

3 importance to the Nation. 

4 SEC. 3. PROFESSIONAL JUDGMENT BUDGET FOR INITIA5 TIVES OF NIH UNDER NATIONAL ALZ6 HEIMER’S PROJECT. 

7 Section 2 of the National Alzheimer’s Project Act 

8 (Public Law 111–375) (42 U.S.C. 11225) is amended— 

9 (1) by redesignating subsection (h) as sub10 section (i); and 

11 (2) by inserting after subsection (g) the fol12 lowing: 

13 ‘‘(h) PROFESSIONAL JUDGMENT BUDGET.—For each 

14 fiscal year through fiscal year 2025, the Director of the 

15 National Institutes of Health shall prepare and submit, 

16 directly to the President for review and transmittal to 

17 Congress, after reasonable opportunity for comment (but 

18 without change) by the Secretary of Health and Human 

19 Services and the Advisory Council, an annual budget esti20 mate (including an estimate of the number and type of 

21 personnel needs for the Institutes) for the initiatives of 

22 the National Institutes of Health pursuant to this Act.’’. 

Æ 


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