I 

116TH CONGRESS 

1ST SESSION H. R. 1903 

To amend the Older Americans Act of 1965 to support individuals with 

younger onset Alzheimer’s disease. 

IN THE HOUSE OF REPRESENTATIVES 

MARCH 27, 2019 

Miss RICE of New York (for herself, Ms. STEFANIK, Mr. KING of New York, 

Mr. TRONE, Mr. SMITH of New Jersey, and Ms. WATERS) introduced the 

following bill; which was referred to the Committee on Education and 

Labor 

A BILL 

To amend the Older Americans Act of 1965 to support 

individuals with younger onset Alzheimer’s disease. 

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled, 

3 SECTION 1. SHORT TITLE. 

4 This Act may be cited as the ‘‘Younger Onset Alz5 heimer’s Act’’. 

6 SEC. 2. FINDINGS. 

7 Congress finds the following: 

8 (1) Approximately 5,800,000 individuals in the 

9 United States are living with Alzheimer’s disease. 


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1 This includes approximately 200,000 individuals 

2 with younger onset Alzheimer’s disease. 

3 (2) Alzheimer’s disease costs the United States 

4 more than $290,000,000 per year, including 

5 $195,000,000 in costs to Medicare and Medicaid. 

6 (3) The Older Americans Act of 1965 (42 

7 U.S.C. 3001 et seq.) includes services that focus on 

8 the needs of individuals with Alzheimer’s disease and 

9 related disorders. The need to specifically support 

10 individuals with younger onset Alzheimer’s disease is 

11 growing. 

12 SEC. 3. YOUNGER ONSET ALZHEIMER’S DISEASE. 

13 The Older Americans Act of 1965 is amended— 

14 (1) in section 102 (42 U.S.C. 3002), by adding 

15 at the end the following: 

16 ‘‘(55) The term ‘younger onset Alzheimer’s dis17 ease’, with respect to an individual, means an indi18 vidual with Alzheimer’s disease or a related disorder 

19 who has not attained 60 years of age.’’; 

20 (2) in section 302(3) (42 U.S.C. 3022(3)), by 

21 inserting ‘‘, including an individual with younger 

22 onset Alzheimer’s disease’’ before the period; 

23 (3) in section 711(6) (42 U.S.C. 3058f(6)), by 

24 inserting ‘‘of any age’’ after ‘‘individual’’; and 


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1 (4) in section 721(b)(13) (42 U.S.C. 

2 3058i(b)(13))— 

3 (A) in subparagraph (B), by striking ‘‘; 

4 or’’; 

5 (B) in subparagraph (C), by striking the 

6 period and inserting ‘‘; or’’; and 

7 (C) by adding at the end the following: 

8 ‘‘(D) individuals with Alzheimer’s disease, 

9 including those with younger onset Alzheimer’s 

10 disease.’’. 

11 SEC. 4. REPORT. 

12 (a) IN GENERAL.—Not later than 300 days after the 

13 date of enactment of this Act, and annually thereafter, 

14 the Assistant Secretary for Aging shall submit a report, 

15 to the committees of Congress described in subsection (b), 

16 that includes— 

17 (1) an overview of programmatic functions and 

18 performance with respect to the amendments made 

19 by section 3, including information about individuals 

20 with younger onset Alzheimer’s disease; and 

21 (2) an identification of the gaps in needs of in22 dividuals with younger onset Alzheimer’s disease. 

23 (b) COMMITTEES.—The committees of Congress de24 scribed in this subsection are— 


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1 (1) the Special Committee on Aging, the Com2 mittee on Health, Education, Labor, and Pensions, 

3 and the Committee on Finance, of the Senate; and 

4 (2) the Committee on Education and Labor, 

5 and the Committee on Energy and Commerce, of the 

6 House of Representatives. 

7 SEC. 5. DEFINITION OF YOUNGER ONSET ALZHEIMER’S DIS8 EASE. 

9 In this Act, the term ‘‘younger onset Alzheimer’s dis10 ease’’ has the meaning given the term in section 102(55) 

11 of the Older Americans Act of 1965 (42 U.S.C. 3002(55)), 

12 as added by section 3. 

Æ 


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