CDC Public Health Datasets and Access Guide for Tribes and Tribal Epidemiology Centers

December 30, 2022

Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

Cross-Cutting Data 

Library 

Centers for Disease 

Control and 

Prevention (CDC)

CDC Data and Statistics

Cross-agency view of CDC data and statistics and 

tools for working with the data.

• Access CDC Data and Statistics to 

identify data of interest, points of 

contact, and information on how to 

access the data.

Cross-Cutting Data 

Library 

Center for 

Surveillance, 

Epidemiology, and 

Laboratory Services 

(CSELS)

CDC WONDER (Wide-ranging ONline Data for 

Epidemiologic Research)

Menu-driven system that makes a wide array of 

CDC’s information resources available to public 

health professionals and the public.

• Access the CDC WONDER site to 

identify data of interest and 

information on accessing or requesting 

specific data.

Health, United 

States

National Center for 

Health Statistics 

(NCHS)

Health, United States

Presents an overview of national health trends 

organized around four subject areas: health status 

and determinants, utilization of health resources, 

healthcare resources, and healthcare expenditures 

and payers. Uses data from a wide variety of 

sources, even external to CDC. Tables examine 

long terms trends in health over a wide range of 

demographic and socioeconomic indicators.

Estimates for the American Indian/Alaska Native 

population are presented where available. 

• Access the Health, United States – Data 

Finder site for current and recent 

reports. Drop-down menus allow users 

to search for tables that have data on 

specific groups. 

• Access Previous Reports.

Healthy People National Center for 

Health Statistics 

(NCHS)

Healthy People

Identifies public health priorities to help 

individuals, organizations, and communities across 

the United States improve health and well-being. 

Healthy People 2030, the initiative’s fifth iteration, 

builds on knowledge gained over the first four

decades. NCHS leads measurement of the nation's 

Access publicly available data: 

• Healthy People 2030 Objectives

• Healthy People 2020 Disparities Data 

• Healthy People 2020 Progress by 

Population Group – Choose “Race and 
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Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

progress toward meeting objective targets as well 

as overarching goals of the Healthy People 

initiative, which include eliminating disparities and 

achieving health equity. Healthy People 2030

includes American Indian/Alaska Native in its 

standard race/ethnicity data template; 163 

objectives collect data for this population across 

approximately 29 mostly federal data systems, 

and data are shown when they meet applicable 

presentation standards. 

Ethnicity” under the “Group by” 

column in the chart and then select 

“Topic Area” in the first column. 

National Center 

for Health 

Statistics (NCHS) 

Public-Use Data 

National Center for 

Health Statistics 

(NCHS)

NCHS Public-Use Data File and Documentation site

Provides access to datasets, documentation, and 

questionnaires from NCHS surveys and data 

collection systems. Visit the site for a list of 

available data. 

• Access data downloading instructions 

in the “readme” files on the NCHS 

Public-Use Data File and 

Documentation site.

• Users of NCHS public-use data files 

must comply with data use 

restrictions to ensure that the 

information will be used solely for 

statistical analysis or reporting 

purposes.

Antimicrobial 

Resistance 

National Center for 

Emerging and 

Zoonotic Infectious 

Diseases (NCEZID)

National Antimicrobial Resistance Monitoring 

System (NARMS)

Provides 1) antibiotic susceptibility data on enteric 

pathogens (Salmonella, Shigella, E. coli, 

Campylobacter, non-cholerae Vibrio); 2) predicted 

antibiotic resistance based on analysis of whole 

genome sequence data among isolates sequenced 

for PulseNet; 3) summaries of the results of testing 

and predicted determinations for each genus, 

species, serotype, drug, and drug class; (4) annual 

• Access data on the NARMs Now: 

Human Data site. 

• Email entericbacteria@cdc.gov to 

request NARMS data that cannot be 

obtained via CDC NARMS Now. 

• Some requests may require a Data Use 

Agreement (DUA). 
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Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

reports of resistance trends and generates 

datasets for research purposes by CDC staff and 

the worldwide scientific community; and 5) Publicfacing tools on the web for querying the data and 

downloading summary reports and individual 

isolate data. 

• Depending upon the nature and scope 

of the request, it can take several 

weeks to months to provide the data. 

Bacteria, Enterics, 

Amoeba, and 

Mycotics 

National Center for 

Emerging and 

Zoonotic Infectious 

Diseases (NCEZID)

BEAM (Bacteria, Enterics, Amoeba, and Mycotics) 

Dashboard

Interactive tool to access and visualize data from 

the System for Enteric Disease Response, 

Investigation, and Coordination (SEDRIC). Provides 

timely data on pathogen trends and serotype 

details to inform work to prevent illnesses from 

food and animal contact. Focused on data for 

Salmonella bacteria, but will eventually include 

additional pathogens, antimicrobial resistance 

data, and epidemiologic data from outbreak 

investigations. Does not present tribal data 

separately; however, it does provide access to 

real-time data for all partners.

• Access the BEAM (Bacteria, Enterics, 

Amoeba, and Mycotics) Dashboard. 

• Access Frequently asked questions.

• Email simso@cdc.gov to request access 

to additional data. 

Babesiosis Center for Global 

Health (CGH)

National Surveillance for Babesiosis

Contains case patient de-identified data on 

demographics, illness, and exposures. Cases are 

reported by state and local jurisdictions. 

Babesiosis case report form shows more 

information on the data collected. 

• To request additional data or 

assistance, fill out the tribal public 

health data request form. 

• A DUA is required. 

• Average time to provide requested 

data once a final DUA is received is 7–

10 days. 

Behavioral Risk 

Factors

National Center for 

Chronic Disease 

Prevention and 

Behavioral Risk Factor Surveillance System (BRFSS)

System of health-related telephone surveys that 

collect state data (50 states, District of Columbia, 3 

• Access BRFSS questionnaires, data, and 

data analysis tools on the BRFSS site.
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Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

Health Promotion

(NCCDPHP)

US territories) about more than 400,000 adult US 

residents regarding their health-related risk 

behaviors, chronic health conditions, and use of 

preventive services. 

• To request additional data or 

assistance, fill out the tribal public 

health data request form.

Botulism National Center for 

Emerging and 

Zoonotic Infectious 

Diseases (NCEZID)

National Botulism Surveillance 

System

Collects reports of all laboratory-confirmed 

botulism cases in the United States and is 

continuously monitored for early detection of 

outbreaks. Demographic (e.g., age, sex, race and 

ethnicity), clinical (e.g., transmission category, 

case-patient outcome), laboratory (e.g., laboratory 

testing method, toxin type), and epidemiologic 

(e.g., vehicle) data are reported by all 50 states 

and the District of Columbia.

• Email botsurveillance@cdc.gov to ask 

for a data request form. Complete the 

form and return it to the same email 

address. 

• Average time to provide the data is 1–3 

months, depending on the nature and 

extent of the request. 

Cancer National Center for 

Chronic Disease 

Prevention and 

Health Promotion

(NCCDPHP)

The US Cancer Statistics American Indian and 

Alaska Native Incidence Analytic Database can be 

used to describe the incidence of cancer, identify 

American Indian and Alaska Native populations 

most affected by cancer, evaluate cancer 

prevention and screening activities, and assess 

cancer disparities.

• Access public use data on the US 

Cancer Statistics American Indian and 

Alaska Native Incidence Data site. 

• To request additional data or 

assistance, fill out the tribal public 

health data request form.

Childhood Blood 

Lead 

National Center for 

Environmental 

Health (NCEH)

Childhood Blood Lead Surveillance System

Contains de-identified data received from state 

and some local health departments on children 

tested for lead levels in their jurisdictions. 

• Email LPPS@cdc.gov to request data 

assistance. In some cases, states may 

have more complete data than CDC. 

National and state by county data files 

are available on CDC’s website. CDC 

can also assist with identifying state or 

local Childhood Lead Poisoning 

Prevention Program points of contact.
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Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

• Average time to provide the data varies 

depending on the nature and extent of 

the request. 

Cholera and Other 

Vibrio Illness 

National Center for 

Emerging and 

Zoonotic Infectious 

Diseases (NCEZID)

Cholera and Other Vibrio Illness Surveillance 

(COVIS)

Reports data on human infections with pathogenic 

(illness-causing) species of the family 

Vibrionaceae, which cause vibriosis and cholera. 

Data include demographics (e.g., age, sex, race 

and ethnicity), a description of the person’s illness 

and medical history; recent seafood consumption; 

recent exposure to bodies of water, raw or live 

seafood or their drippings, or marine life; and 

source(s) of seafood consumed. For more 

information on data collected, see the COVIS 

report form. 

• Email COVISResponse@cdc.gov to ask 

for a data request form. Complete and 

return the form to the same email 

address. 

• Average time to provide the data is 3–6 

months, depending on the nature and 

extent of the request.

COVID-19 Centers for Disease 

Control and 

Prevention (CDC)

CDC COVID Data Tracker

Provides COVID-19 data and surveillance data. 

Frequently Asked Questions: COVID-19 Data and 

Surveillance

• Access the CDC COVID Data Tracker. 

• To request additional data or 

assistance, fill out the tribal public 

health data request form. 

COVID-19 National Center for 

Emerging and 

Zoonotic Infectious 

Diseases (NCEZID)

National Wastewater Surveillance System (NWSS)

Coordinates and builds the nation’s capacity to 

track the presence of SARS-CoV-2, the virus that 

causes COVID-19, in wastewater samples collected 

across the nation. State, tribal, local, and 

territorial health departments participating in 

NWSS submit testing data to CDC. CDC then 

standardizes and interprets these data and 

presents them in the COVID Data Tracker. How 

often sites collect wastewater samples and how 

• Access data on the COVID Data Tracker: 

Wastewater Surveillance site. Users can 

view and download data from two 

public datasets: NWSS Public SARSCoV-2 Wastewater Metric Data and 

NWSS Public SARS-CoV-2 

Concentration in Wastewater Data. 
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Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

frequently data are reported to CDC varies by 

health department.

NWSS Data Collation and Integration for Public 

Health Event Response (DCIPHER) data are

available to tribes and Tribal Epidemiology Centers 

(TECs) upon explicit permission from participating 

tribes and approval to access the DCIPHER system. 

• Email NWSS@cdc.gov to request 

additional data and for access to the 

DCIPHER system.

• Users must sign the DCIPHER Rules of 

Behavior and NWSS non-disclosure 

agreement (NDA), and only the data 

from each jurisdiction (tribe) is 

available to that jurisdiction (tribe). 

• Data can be made available 

immediately after that if the requestor 

already has DCIPHER access. Several 

working days are needed to provide 

access to the DCIPHER system. 

• TECs can request access to the tribal 

data by filling out the tribal public 

health data request form. CDC will 

contact the participating tribe(s) for 

which data are requested to determine 

whether the tribe(s) give permission to 

provide the data to a TEC or TECs. 

Chronic Disease National Center for 

Chronic Disease 

Prevention and 

Health Promotion

(NCCDPHP)

Leading Indicators for Chronic Diseases and Risk 

Factors website

Provides data that can be sorted on indicator, 

state/national comparisons, and “breakout 

category,” which includes demographics. 

• Access the Leading Indicators for 

Chronic Diseases and Risk Factors 

website.

• Visit Getting Started video guides for 

interacting with the data.

Cyclosporiasis Center for Global 

Health (CGH)

National Surveillance for Cyclosporiasis

Contains case patient de-identified data on 

• Email data requests to 

cyclospora@cdc.gov. 
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Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

demographics, illness, and exposures. Cases are 

reported by state and local jurisdictions.

• A DUA is required. 

• Average time to provide data is 7–10 

days. 

Environmental 

Health

National Center for 

Environmental 

Health (NCEH)

Environmental Public Health Tracking Network 

(EPHTN)

Brings together health data and environmental 

data from national, state, and city sources and 

provides supporting information to make the data 

easier to understand. The Tracking Network has 

data and information on environments and 

hazards, health effects, and population health.

• Access the Environmental Public Health 

Tracking Network site. The site

provides downloadable datasets, 

including topic-specific data 

dashboards such as the Environmental 

Justice Dashboard and Heat and Health 

Tracker. On Tracking’s Data Explorer, a 

“Tribal Area” points of interest layer is 

available to add to any data query 

alongside the environmental and 

health outcome data.

• To request additional assistance, fill out 

the tribal public health data request 

form.

Firearm Injury National Center for 

Injury Prevention 

and Control (NCIPC)

Firearm Injury Surveillance Through Emergency 

Rooms (FASTER) Program

FASTER data are collected from a subset of 10 

jurisdictions contributing data to the National 

Syndromic Surveillance Program (NSSP), which 

collects data from about 71% of the nation’s 

emergency departments in near real-time through 

the BioSense Platform. 

• Email fasternofo@cdc.gov to request 

access to FASTER data.

• A DUA is needed with each jurisdiction

that provided the requested data to 

CDC, which CDC can facilitate. 

Foodborne, 

Waterborne, and 

Enteric Disease 

Outbreaks

National Center for 

Emerging and 

Zoonotic Infectious 

Diseases (NCEZID)

National Outbreak Reporting System (NORS)

Receives data on all foodborne and waterborne 

disease outbreaks and enteric disease outbreaks 

from other sources. For more information on data 

collected, see the NORS reporting forms. 

• Access the NORS data and NORS 

Dashboard. 

• To request additional data, email 

NORSAdmin@cdc.gov and ask for a 
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Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

NORS is making updates in late 2022 that will 

include the addition of two high-level tribal healthrelated questions: 1) whether exposures occurred 

on tribal land (based on census bureau 

boundaries) and 2) how many cases visited an 

Indian Health Service or tribal facility. 

data request form. Complete and send 

the form back to the same email 

address. 

• Average time to provide the data is 2–4 

weeks, depending on the nature and 

extent of the request.

Gonorrhea National Center for 

HIV, Viral Hepatitis, 

STD, and TB 

Prevention 

(NCHHSTP)

Gonococcal Isolate Surveillance Project (GISP)

Monitors antibiotic resistance trends in Neisseria 

gonorrhoeae bacteria. In GISP, N. gonorrhoeae 

specimens are collected each month from the first 

25 men who attend STD clinics in selected US 

cities and have also been diagnosed with urethral 

gonorrhea. Participating regional laboratories test 

the specimens for resistance to select antibiotics. 

The results of these tests are then transmitted to 

CDC, where they are collated and analyzed. Data 

available: aggregate and line list data. Of note, in 

GISP during 2019–2020, the percentage of GISP 

participants identifying as Alaska Native or Native 

American was 0.75% and 0.29%, respectively.

• To request additional assistance, fill out 

the tribal public health data request 

form.

• Depending on the complexity of the 

data request, it may take several 

months to obtain the necessary 

reviews and approvals and to process 

data requests. 

Hantavirus National Center for 

Emerging and 

Zoonotic Infectious 

Diseases (NCEZID)

National Hantavirus Surveillance Registry

Contains surveillance data for confirmed 

hantavirus cases from 1993 to present. More 

information on what data are collected by states is 

shown on the Hantavirus Case Report Form. 

Data does not contain reference to tribal 

community. Often the only variable that 

references tribal member is the race variable 

categorizing a case as “American Indian or Alaska 

Native.”

• Access the Reported Cases of 

Hantavirus Disease page. 

• Access high-level information on the 

Reported Cases of Hantavirus Disease 

site.

• For additional data, email a data 

request to spather@cdc.gov. CDC 

receives data only at the state level. 

Contact your local or state health 
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Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

department for information about 

hantavirus disease cases in your area. 

• A DUA is not required; however, CDC 

has to contact the jurisdiction(s) that 

provided the data to request approval 

of data release. 

• Average time to provide the data varies 

depending on the nature and extent of 

the request.

Healthcare Safety National Center for 

Emerging and 

Zoonotic Infectious 

Diseases (NCEZID)

National Healthcare Safety Network (NHSN)

Provides data needed to identify problem areas, 

measure progress of prevention efforts, and 

ultimately eliminate healthcare-associated 

infections (HAIs). Allows healthcare facilities to 

track blood safety errors and important healthcare 

process measures such as healthcare personnel 

influenza vaccine status and infection control 

adherence rates.

Serves over approximately 25,000 medical 

facilities tracking HAIs. Current participants 

include acute care hospitals, long-term acute care 

hospitals, psychiatric hospitals, rehabilitation 

hospitals, outpatient dialysis centers, ambulatory 

surgery centers, and nursing homes, with hospitals 

and dialysis facilities representing the majority of 

facilities reporting data.

• Access NHSN Reports.

• To request additional assistance, fill out 

the tribal public health data request 

form.

Hepatitis National Center for 

HIV, Viral Hepatitis, 

Viral Hepatitis Surveillance • Access Viral hepatitis surveillance 

reports.
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Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

STD, and TB 

Prevention 

(NCHHSTP)

Includes case-based surveillance for acute 

hepatitis A; acute, chronic and perinatal hepatitis 

B; and acute, chronic, and perinatal hepatitis C. 

More information on what data are collected by 

states is shown on the Viral Hepatitis Case Report 

Form. (This form was finalized in September 2013 

to serve as a guide for surveillance and is based on 

Council of State and Territorial Epidemiologists

recommendations) and the Viral Hepatitis Case 

Record Form (National Electronic 

Telecommunications System for Surveillance).

• To request additional data or 

assistance, fill out the tribal public 

health data request form. 

• Other data available upon request 

include (1) Limited de-identified line 

level data, releasable in compliance 

with the Assurance of Confidentiality 

covering these data and (2) Custom 

data requests can be fulfilled if 

permissible and based on data rerelease agreements with each state, 

and guidance/assistance with data use 

and interpretation, on suggested uses.

HIV/AIDS National Center for 

HIV, Viral Hepatitis, 

STD, and TB 

Prevention 

(NCHHSTP)

National HIV/AIDS Surveillance

Includes case-based surveillance and longitudinal 

data collection for cases meeting the HIV case 

definition, including birth/death certificate data, 

laboratory reports and other relevant data

For additional allowable (based on data re-release 

agreements with each state) a data request form 

can be request from the branch chief. Data 

available at national, state, and county (with 

some restrictions) levels and includes diagnoses, 

prevalence, care outcomes, social determinants of 

health, etc.

• Access HIV Surveillance reports and 

data tables.

• To request additional data or 

assistance, fill out the tribal public 

health data request form.

• Custom data requests can be fulfilled if 

permissible and based on data rerelease agreements with each state, 

and guidance/assistance with data use 

and interpretation, on suggested uses.

HIV/AIDS National Center for 

HIV, Viral Hepatitis, 

STD, and TB 

National HIV Behavioral Surveillance (NHBS)

Provides bio-behavioral surveillance data among 

persons at high risk for HIV infection.

• Access reports, publications, and 

informatics under each population 

section from the NHBS homepage.
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Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

Prevention 

(NCHHSTP)

Surveillance is conducted in rotating, annual cycles 

in three different populations at increased risk for 

HIV: 1) gay, bisexual, and other men who have sex 

with men (known as the MSM cycle); 2) persons 

who inject drugs (known as the PWID cycle); and 

3) heterosexually active persons at increased risk 

for HIV infection (known as the HET cycle).

Data collection instruments for NHBS are available 

at Methods and Questionnaires (cdc.gov)

Data are published in annual reports summarizing 

key outcomes. 

• Email nhbs@cdc.gov to request custom 

data requests for aggregated results or 

to request access to restricted use 

datasets.

HIV/AIDS National Center for 

HIV, Viral Hepatitis, 

STD, and TB 

Prevention 

(NCHHSTP)

Medical Monitoring Project (MMP)

Provides data on persons with diagnosed HIV, 

including interview and medical record abstraction 

data.

Data collection instruments

• Access HIV Surveillance Reports.

• Email custom data requests to 

MMP@cdc.gov. The process will 

include completing a concept proposal 

form. MMP staff are available to 

provide technical assistance in 

requesting, analyzing, and interpreting 

MMP data. 

HIV, STDs, 

Hepatitis, and TB

National Center for 

HIV, Viral Hepatitis, 

STD, and TB 

Prevention 

(NCHHSTP)

NCHHSTP AtlasPlus

Allows users to interactively create customized 

tables, maps, and charts using nearly 20 years of 

CDC’s surveillance data on HIV, viral hepatitis, 

STDs, and TB. Also provides access to indicators on 

social determinants of health, allowing users to 

view social and economic data in conjunction with 

surveillance data for each disease. Provides charts, 

maps, and tables functions and allows viewing 

data by year, geography, and demographics.

• Access the NCHHSTP AtlasPlus site. 

• FAQs, technical notes, and a glossary 

are available on the site homepage. 

• To request additional data or 

assistance, fill out the tribal public 

health data request form.
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Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

Influenza (Flu) National Center for 

Infectious and 

Respiratory Diseases 

(NCIRD) 

Influenza Hospital Surveillance Network (FluSurvNet)

Provides data on hospitalization rates associated 

with flu. A minimum set of data on all identified flu 

cases includes age, sex, race and ethnicity, 

surveillance site, date of hospital admission, and 

positive influenza test result/date. Hospitalization 

rates are calculated as the number of residents of 

a defined area who are hospitalized with a positive 

influenza laboratory test divided by the total 

population within the defined area. FluSurv-NET 

collects data on American Indian or Alaska Native 

race, Indian Health Service insurance coverage, 

and patient-level census-tract data. 

• Access data, including rate data by 

race/ethnicity and some clinical and 

demographic data, on FluView 

Interactive (updated weekly).

• Email yta8@cdc.gov to request other 

data. 

• Average time to provide the data is 1–4 

months from approval, depending on 

the nature and complexity of the 

request, and some requests may 

require a data use agreement.

• A DUA is required. 

Injury National Center for 

Injury Prevention 

and Control (NCIPC)

WISQARSTM

An interactive database that provides fatal and 

nonfatal injury, violent death, and cost of injury 

data. Researchers, the media, public health 

professionals, and the public can use WISQARSTM 

data to learn more about the public health and 

economic burden associated with unintentional 

and violence-related injury in the United States.

• Access WISQARS data.

• Access WISQARSTM Help Using Injury 

Data.

• To request additional assistance, fill out 

the tribal public health data request 

form.

Laboratory-based 

Enteric Disease 

Surveillance 

(LEDS)

National Center for 

Emerging and 

Zoonotic Infectious 

Diseases (NCEZID)

Laboratory-based Enteric Disease Surveillance 

(LEDS) system

Collects data on Salmonella, Shigella, and Shiga 

toxin-producing E. coli (STEC) infections. Data 

include demographic information about the ill 

person (age, sex, state of residence), and details 

about the organism causing the specific infection. 

• Email phlissupport@cdc.gov to ask for 

a data request form. Complete and 

return the form to the same email 

address.

• Average time to provide the data is 1–3 

months, depending on the nature and 

extent of the request.
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Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

These data are reported to CDC by state, local, and 

territorial public health laboratories.

Listeria National Center for 

Emerging and 

Zoonotic Infectious 

Diseases (NCEZID)

National Listeria Surveillance

Collects reports of laboratory-confirmed cases of 

human listeriosis in the United States. 

Demographic, clinical, laboratory, and 

epidemiologic data are collected using a 

standardized, extended questionnaire. 

• Email listeria@cdc.gov to ask for a data 

request form. Complete and return the 

form to the same email address. 

• Average time to provide the data is 1–3 

months, depending on the nature and 

extent of the request. 

Mpox National Center for 

Emerging and 

Zoonotic Infectious 

Diseases (NCEZID)

Mpox 2022 Outbreak Cases and Data

Provides Mpox case counts and trends, laboratory 

test result data, and vaccine administration data.

• Access Mpox downloadable datasets.

• To request additional data or 

assistance, fill out the tribal public 

health data request form.

National Health 

and Nutrition 

Examination 

Survey

National Center for 

Health Statistics 

(NCHS)

National Health and Nutrition Examination Survey 

(NHANES)

Examines a nationally representative sample of 

about 5,000 persons each year. These persons are 

located in counties across the country, 15 of which 

are visited each year.

Interview includes demographic, socioeconomic, 

dietary, and health-related questions. The 

examination component consists of medical, 

dental, and physiological measurements, as well 

as laboratory tests administered by highly trained 

medical personnel.

• Access the NHANES public dashboard. 

• To request additional data on American 

Indian/Alaska Native populations, 

submit a research proposal through the 

CDC Research Data Centers. 

• NCHS provides a list of restricted 

variables by NCHS survey. Email 

rdca@cdc.gov for assistance in 

accessing restricted NCHS data. 

• From the time that a proposal is 

submitted to the RDC to physically 

accessing the data, researchers can 

expect the process to take 11‒19 

weeks.
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Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

National Health 

Interview Survey

National Center for 

Health Statistics 

(NCHS)

National Health Interview Survey (NHIS)

Provides data on a broad range of health topics 

collected through personal household interviews, 

including data to track health status, healthcare

access, and progress toward achieving national 

health objectives. See the NHIS Data, 

Questionnaires and Related Documentation for 

information on data collected. 

• Access the NHIS public dashboard on 

the Interactive Summary Health 

Statistics for Adults website.

• To request additional data on American 

Indian/Alaska Native populations, 

submit a research proposal through the 

CDC Research Data Centers (RDCs). 

• NCHS provides a list of restricted 

variables by NCHS survey. Email 

rdca@cdc.gov for assistance in 

accessing restricted NCHS data. 

• Researchers can expect to access the 

data approximately 11–19 weeks after 

submitting the proposal to the RDC.

National Intimate 

Partner and 

Sexual Violence 

National Center for 

Injury Prevention 

and Control (NCIPC)

National Intimate Partner and Sexual Violence 

Survey (NISVS)

Provides data on sexual violence (SV), stalking, and 

intimate partner violence (IPV), including lifetime 

and 12-month experiences of SV, stalking, and IPV 

at the national and state level; associated health 

impacts; and age of first victimization of SV, 

stalking, and IPV. 

Also provides data from a 2010 oversample of 

American Indian/Alaska Native persons. These 

data include tribal affiliation (if provided by the 

respondent). Data were collected by CDC on 

behalf of the National Institute for Justice. Data 

• Access data at National Intimate 

Partner and Sexual Violence Survey 

(NISVS) Series website (umich.edu).

• Request restricted data by clicking on 

the “access restricted data” button for 

each survey and follow the page 

instructions. 
15

Data Subject Lead CDC Center, 

Institute, or Office

Data System or Dataset How To Access the Data

were collected simultaneously with the general 

population data. 

Typhoid and 

Paratyphoid Fever 

National Center for 

Emerging and 

Zoonotic Infectious 

Diseases (NCEZID)

National Typhoid and Paratyphoid Fever 

Surveillance System (NTPFS)

Collects data on human cases of typhoid and 

paratyphoid fever. State and local health officials 

use a standard report form to report detailed 

epidemiologic information on laboratoryconfirmed cases, including patient demographic 

and clinical information, typhoid vaccination 

status, and travel history.

• Email entericfever@cdc.gov and ask for 

a data request form. Complete and 

send the form back to the same email 

address. 

• Average time to provide the data is 1–3 

months, depending on the nature and 

extent of the request. 

Violent Death National Center for 

Injury Prevention 

and Control (NCIPC)

National Violent Death Reporting System (NVDRS)

Tracks and monitors violent deaths (suicides, 

homicides, legal intervention deaths, 

unintentional firearm deaths, and deaths of 

undetermined intent). All 50 states, the District of 

Columbia, and Puerto Rico participate in NVDRS. 

Provides a de-identified, multi-state, case-level 

dataset comprising hundreds of unique variables. 

The database includes short narratives to describe 

the circumstances related to violent deaths, 

including descriptions from law enforcement and 

coroner/medical examiner investigative reports. 

While tribal affiliation is not available, NVDRS does 

collect information on race and ethnicity. 

Currently, data is available for 2003–2020. 

• Email nvdrs-rad@cdc.gov to ask for 

data access request documents and 

forms. Complete and return the forms 

as instructed. 

• Requestors must prepare and submit a 

proposal for review. To request access 

to the NVDRS RAD, the primary 

investigator must meet all of the 

following criteria:

- Have a master's degree or higher;

- Hold a research position or faculty 

appointment at a research 

organization, government agency, or 

institution of higher education. This 

includes research foundations or grantmaking organizations.

- Agree to comply with NVDRS RAD 

security, confidentiality, and data 

protection requirements, as outlined 

during the review process
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- Local, county, state, and federal 

government employees, regardless of 

degree or research position, are also 

eligible to apply for the NVDRS RAD.

• On average, data request proposals are 

reviewed within 4–6 weeks. Upon 

receipt of response to 

reviews/feedback, data access is 

provided within 1–5 business days.

Pregnancy Risk 

Assessment 

National Center for 

Chronic Disease 

Prevention and 

Health Promotion

(NCCDPHP)

Pregnancy Risk Assessment Monitoring System 

(PRAMS) 

Provides data on maternal health behaviors and 

experiences before, during and shortly after 

pregnancy. Includes data on America Indian and 

Alaska Native populations. Several PRAMS 

grantees also specifically sample American 

Indian/Alaska Native populations for PRAMS 

surveillance. 

• Fill out the PRAMS Proposal data 

request form, which is available on the 

PRAMS data request site. The site also 

provides instructions on how to submit 

the data request form. 

• A signed Data Sharing Agreement (DSA) 

is required with any data request. 

Instructions for completing the DSA are 

on the data request site. 

• Average time to provide the data is 1–2 

months, depending on the nature and 

extent of the request.

Rocky Mountain 

Spotted Fever

(RMSF)

National Center for 

Emerging and 

Zoonotic Infectious 

Diseases (NCEZID)

RMSF Prevention Program

Includes program indicators such as prevention 

services, capacity surveys. Relevant tribes and 

TECs are already included in reports and findings 

via the RMSF coalition. All reports and program 

findings are available to relevant tribal partners.

RMSF Clinical Studies (2002–2011)

• Access RMSF Epidemiology and 

Statistics.

• Data summaries and reports are 

provided as soon as they are available 

to relevant tribes and TECs. 
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Data Subject Lead CDC Center, 

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Data System or Dataset How To Access the Data

Provides medical chart abstractions on RMSF cases 

and non RMSF hospitalized controls. Findings have 

been shared with tribal partners and published in 

the peer reviewed literature. All data belong to 

the individual tribes, but de-identified data could 

be shared with TEC at the direction of both tribes.

RMSF Long Term Sequela Study

Includes medical chart abstractions, patient 

interviews and neurological exams for selected 

patients. Findings have been shared with relevant 

tribes and are awaiting IHS approval for 

publication in the peer reviewed literature. Deidentified data belong to the tribes but could be 

shared with TECs at the direction of participating 

tribes.

RMSF Rodeo Study, KAB Surveys, Tick Burden,

and Project Enrollment Data

Findings have been shared with tribal leaders and 

published in the peer reviewed literature. Data 

belong to the tribe but could be shared with TECs

at the direction of the tribe.

Ecological data in tribal communities highly 

endemic for RMSF. Data include ticks tested for 

Rickettsia, canine seroprevalence studies etc. Data 

are collected with tribal permission for relevant 

communities. Data summaries are shared with 

relevant tribes when they become available. This 

data could be shared with relevant tribes by 

request within 30 days.

• All data from tribal-specific studies 

belong to the individual tribe(s), but 

de-identified data can be shared with 

TECs at the direction of participating 

tribes.

• A DUA is required. 

• To request additional data or 

assistance, fill out the tribal public 

health data request form.

• De-identified data could be provided to 

participating tribes by request within 1 

week. 
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Data Subject Lead CDC Center, 

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Data System or Dataset How To Access the Data

Sexually 

Transmitted 

Diseases (STDs)

National Center for 

HIV, Viral Hepatitis, 

STD, and TB 

Prevention 

(NCHHSTP)

Nationally Notifiable Disease Surveillance System 

(NNDSS)

Provides case-based surveillance data for 

nationally notifiable sexually transmitted diseases 

(syphilis, chlamydia, gonorrhea, and chancroid).

The NETSS Implementation Plan contains the 

procedures and record layouts that must be used 

by state and local health departments to 

electronically report cases of nationally notifiable 

STDs to CDC via the National Electronic 

Telecommunication System for Surveillance 

(NETSS).

The STD and congenital syphilis message mapping 

guides (MMGs) outline the requirements for 

electronically reporting cases of nationally 

notifiable STDs in the Health Level 7 (HL7) format. 

Additional aggregate data are available at the 

national, state, and county levels (based on data 

re-release guidelines with CSTE) can be made 

available through custom data requests.

• Access aggregate data published 

annually in the STD surveillance report. 

• Email std_surv_inquiry@cdc.gov to 

request data release guidelines and 

custom data request forms.

• Dependent on intricacies of the data 

request, aggregate data are usually 

available within 2 weeks on average.

Sexually 

Transmitted 

Diseases (STDs)

National Center for 

HIV, Viral Hepatitis, 

STD, and TB 

Prevention 

(NCHHSTP)

STD Surveillance Network (SSuN)

Provides enhanced behavioral, demographic, and 

clinical information on gonorrhea cases reported 

to state and local health departments; provide 

information on patients presenting for care in 

specialty STD clinical settings; and explore 

innovative strategies to improve STD surveillance 

nationwide. Aggregate and line list data are 

available. 

• Email requests for a data dictionary and 

data request template to 

SSUN_TA@cdc.gov.

• Requests for data require a specific 

analysis plan and identification of 

variables of interest. Analytic proposals 

require approval of the Principal 
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Data Subject Lead CDC Center, 

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Investigators in each site contributing 

data.

• The current protocols are provided on 

the SSuN website. Of note, during 

2020–2021, the percentage of all 

gonorrhea cases in participating SSuN 

jurisdictions identifying as Alaska 

Native/Native American was 0.38% and 

0.40%, respectively.

• Depending on the complexity of the 

data request, it may take several 

months to obtain the necessary 

reviews and approvals and to process 

data requests. 

Social 

Vulnerability 

Agency for Toxic 

Substances and 

Disease Registry 

(ATSDR)

CDC/ATSDR Social Vulnerability Index (SVI)

Uses 15 US census variables to help identify 

communities that may need support before, 

during, or after disasters.

• Access the CDC/ATSDR SVI Data and 

Documentation Download site.

• Email svi_coordinator@cdc.gov for 

data assistance.

Tuberculosis National Center for 

HIV, Viral Hepatitis, 

STD, and TB 

Prevention 

(NCHHSTP)

National Tuberculosis (TB) Surveillance System 

(NTSS) and linked National Tuberculosis Molecular 

Surveillance Center (NTMSC) data

Provide case-based surveillance data and related 

genotypic data for verified cases of tuberculosis. 

• Access aggregate data published 

annually in the TB surveillance report.

• To request additional data or 

assistance, fill out the tribal public 

health data request form.
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Data Subject Lead CDC Center, 

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Data System or Dataset How To Access the Data

• Additional aggregate data or limited 

de-identified line level data are 

available in compliance with the 

Assurance of Confidentiality covering 

these data.

• Depending on the complexity of the 

data request, several months may be 

required to obtain the necessary 

reviews and approvals and to process 

data requests. 

VaxView National Center for 

Infectious and 

Respiratory Diseases 

(NCIRD)

VaxView

Provides vaccination coverage data for all ages. 

Data views include ChildVaxView, SchoolVaxView, 

TeenVaxView, AdultVaxView, FluVaxView, and 

COVIDVaxView.

• Access the VaxView website for data 

descriptions, data, visualization tools, 

and user guides. 

• To request additional data or 

assistance, fill out the tribal public 

health data request form. 

Vital Statistics National Center for 

Health Statistics 

(NCHS)

National Vital Statistics System (NVSS) Provides 

data on births and deaths in the United States. The 

Vital Statistics Rapid Release program provides 

access to the timeliest vital statistics for public 

health surveillance, through releases of 1) 

Quarterly Provisional Estimates, 2) Vital Statistics 

Rapid Release Reports, 3) focused surveillance 

activities, and 4) state and national provisional 

control counts of births, deaths and infant deaths 

based on a current flow of vital statistics data from 

state vital records offices.

• Access the NCHS Public Data 

Dashboards.

• For access to additional restricted data, 

which may include additional data on 

American Indian/Alaska Native

populations, follow the instructions at 

Restricted-Use Vital Statistics Data site. 

• Allow 4–6 weeks for processing of data 

requests.

Youth Risk 

Behaviors 

National Center for 

HIV, Viral Hepatitis, 

STD, and TB 

Youth Risk Behavior Surveillance System (YRBSS) 

Monitors six categories of health-related 

behaviors that contribute to the leading causes of 

• Access YRBSS data and documentation. 

Data available: full survey data, annual 

datasets, Combined YRBS middle 
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Data Subject Lead CDC Center, 

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Data System or Dataset How To Access the Data

Prevention 

(NCHHSTP)

death and disability among youth and adults, 

including:

• Behaviors that contribute to unintentional 

injuries and violence

• Sexual behaviors related to unintended 

pregnancy and sexually transmitted 

diseases, including HIV infection

• Alcohol and other drug use 

• Tobacco use

• Unhealthy dietary behaviors

• Inadequate physical activity

• Obesity

• Asthma

• Other health-related behaviors 

• Sexual identity and sex of sexual contacts

YRBSS is a system of surveys. It includes 1) a 

national school-based survey conducted by CDC 

and 2) state, territorial, tribal, and local surveys 

conducted by state, territorial, and local education 

and health agencies and tribal governments. 

school datasets, and Combined YRBS 

high school datasets.

• Use the YRBSS Data Request Form to 

request state, district, territory, or 

tribal government data files not 

available on the website.

• Learn more about Data Availability and 

Requesting YRBSS Data Files.