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[Congressional Bills 111th Congress]
[From the U.S. Government Publishing Office]
[S. Res. 528 Agreed to Senate (ATS)]

111th CONGRESS
  2d Session
S. RES. 528

      Designating May 15, 2010, as ``National MPS Awareness Day''.

_______________________________________________________________________

                   IN THE SENATE OF THE UNITED STATES

                              May 14, 2010

  Mr. Graham (for himself, Mr. Nelson of Florida, Ms. Murkowski, Mr. 
Specter, Mr. Conrad, Mr. Dorgan, Mr. Burr, Mr. Inouye, Mr. Begich, and 
Mr. Kerry) submitted the following resolution; which was considered and 
                               agreed to

_______________________________________________________________________

                               RESOLUTION

 
      Designating May 15, 2010, as ``National MPS Awareness Day''.

Whereas mucopolysaccharidosis (referred to in this resolution as ``MPS'') are a 
        group of genetically determined lysosomal storage diseases that render 
        the human body incapable of producing certain enzymes needed to break 
        down complex carbohydrates;
Whereas MPS diseases cause complex carbohydrates to be stored in almost every 
        cell in the body and progressively cause cellular damage;
Whereas the cellular damage caused by MPS--

    (1) adversely affects the human body by damaging the heart, respiratory 
system, bones, internal organs, and central nervous system; and

    (2) often results in mental retardation, short stature, corneal damage, 
joint stiffness, loss of mobility, speech and hearing impairment, heart 
disease, hyperactivity, chronic respiratory problems, and, most 
importantly, a drastically shortened life span;

Whereas symptoms of MPS are usually not apparent at birth;
Whereas, without treatment, the life expectancy of an individual afflicted with 
        MPS begins to decrease at a very early stage in the life of the 
        individual;
Whereas research has resulted in the development of limited treatments for some 
        MPS diseases;
Whereas promising advancements in the pursuit of treatments for additional MPS 
        diseases are underway as of the date of agreement to this resolution;
Whereas, despite the creation of new remedies, the blood-brain barrier continues 
        to be a significant impediment to effectively treating the brain, which 
        prevents the treatment of many of the symptoms of MPS;
Whereas treatments for MPS will be greatly enhanced with continued public 
        funding;
Whereas the quality of life of the individuals afflicted with MPS, and the 
        treatments available to those individuals, will be enhanced through the 
        development of early detection techniques and early intervention;
Whereas treatments and research advancements for MPS are limited by a lack of 
        awareness about MPS diseases;
Whereas the lack of awareness about MPS diseases extends to individuals within 
        the medical community;
Whereas the cellular damage that is caused by MPS makes MPS a model for the 
        study of many other degenerative genetic diseases;
Whereas the development of effective therapies and a potential cure for MPS 
        diseases can be accomplished by increased awareness, research, data 
        collection, and information distribution; and
Whereas the Senate is an institution that has the ability--

    (1) to raise public awareness about MPS; and

    (2) to encourage and facilitate increased public and private sector 
research for the early diagnosis and treatment of MPS diseases: Now, 
therefore, be it

    Resolved, That the Senate--
            (1) designates May 15, 2010, as ``National MPS Awareness 
        Day''; and
            (2) supports the goals and ideals of ``National MPS 
        Awareness Day''.
                                 <all>
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