IV 

116TH CONGRESS 

1ST SESSION H. RES. 114 

Expressing support for the designation of the 17th day in May as ‘‘DIPG 

Awareness Day’’ to raise awareness and encourage research into cures 

for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in 

general. 

IN THE HOUSE OF REPRESENTATIVES 

FEBRUARY 8, 2019 

Ms. SPEIER (for herself, Mr. JOYCE of Ohio, Mrs. DINGELL, Mr. STIVERS, 

Mr. RASKIN, Mr. SCHIFF, Mr. VELA, Mr. FITZPATRICK, Mr. SMITH of 

New Jersey, Ms. GABBARD, Mr. COHEN, Mr. MCCAUL, Mr. LANGEVIN, 

Ms. BROWNLEY of California, Mr. BUTTERFIELD, Mr. KELLY of Pennsylvania, Mr. SOTO, and Mr. CA ́RDENAS) submitted the following resolution; 

which was referred to the Committee on Energy and Commerce 

RESOLUTION 

Expressing support for the designation of the 17th day in 

May as ‘‘DIPG Awareness Day’’ to raise awareness and 

encourage research into cures for diffuse intrinsic 

pontine glioma (DIPG) and pediatric cancers in general. 

Whereas diffuse intrinsic pontine glioma (DIPG) affects 200 

to 400 children in the United States each year with certain regularity; 

Whereas brain tumors are the leading cause of cancer-related 

death in children; 

Whereas DIPG is the second most common malignant brain 

tumor of childhood; 


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•HRES 114 IH 

Whereas DIPG is the leading cause of childhood death due 

to brain tumors; 

Whereas the median survival time is only 9 months 

postdiagnosis with treatment; 

Whereas 5-year survival is less than 1 percent; 

Whereas given the age at diagnosis and the average life expectancy, the number of life years lost annually because 

of DIPG is approximately 24,000 years of person life lost 

(calculated as the number of children diagnosed by average of male and female life expectancy from that median 

age, 300 × 80 = 24,000 years of person life lost annually); 

Whereas prognosis has not improved for children with DIPG 

in over 40 years; and 

Whereas Federal funding for research for pediatric cancer 

should be increased to address the level of unmet medical 

need for this vulnerable population: Now, therefore, be it 

1 Resolved, That the House of Representatives— 

2 (1) supports the designation of ‘‘DIPG Aware3 ness Day’’; 

4 (2) encourages all people of the United States 

5 to become more informed about diffuse intrinsic 

6 pontine glioma (DIPG) pediatric brain cancer, and 

7 the current challenges to the medical research sys8 tem in designating sufficient research funding for 

9 pediatric cancers; 

10 (3) supports expanded research to better under11 stand DIPG, develop effective treatments, and proVerDate Sep 11 2014 23:34 Feb 08, 2019 Jkt 089200 PO 00000 Frm 00002 Fmt 6652 Sfmt 6201 E:\BILLS\HR114.IH HR114

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1 vide comprehensive care for children with DIPG and 

2 their families; and 

3 (4) encourages public and private sources of re4 search funding to elevate their consideration of the 

5 mortality rate of a type of cancer, as well as the life6 years lost, as significant factors to be considered 

7 during the grant application process. 

Æ 


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