IV 

115TH CONGRESS 

1ST SESSION H. CON. RES. 58 

Expressing support for a month to be known as Cystic Fibrosis Awareness 

Month, and for other purposes. 

IN THE HOUSE OF REPRESENTATIVES 

MAY 19, 2017 

Mr. MARINO (for himself and Mr. MCGOVERN) submitted the following concurrent resolution; which was referred to the Committee on Energy and 

Commerce 

CONCURRENT RESOLUTION 

Expressing support for a month to be known as Cystic 

Fibrosis Awareness Month, and for other purposes. 

Whereas cystic fibrosis, commonly referred to as ‘‘CF’’, is a 

genetic disease affecting more than 30,000 children and 

adults in the United States and nearly 75,000 children 

and adults worldwide; 

Whereas a defective gene causes the body to produce an abnormally thick, sticky mucus that clogs the lungs, and 

these secretions produce life-threatening lung infections 

and obstruct the pancreas, preventing digestive enzymes 

from reaching the intestines to help break down and absorb food; 

Whereas there are approximately 900 new cases of CF each 

year in the United States; 


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•HCON 58 IH 

Whereas infant blood screening to detect genetic defects is 

the most reliable and least costly method to identify individuals likely to have one of 1,800 different CF mutations; 

Whereas early diagnosis of CF permits early treatment and 

enhances quality of life, longevity, and treatment; 

Whereas CF impacts families as well as patients because of 

the intense daily disease management protocols patients 

must endure; 

Whereas there are more than 120 world-class treatment centers with highly trained and dedicated providers in the 

United States that specialize in delivering high-quality, 

coordinated care for CF patients and their families; 

Whereas the number of adults with CF has steadily grown 

and the median age of survival for a person with CF is 

now nearly 40 years of age in the United States; 

Whereas innovative precision medicines and treatments have 

greatly improved and extended the lives of CF patients; 

and 

Whereas May would be an appropriate month to establish as 

‘‘Cystic Fibrosis Awareness Month’’: Now, therefore, be 

it 

1 Resolved by the House of Representatives (the Senate 

2 concurring), That the House of Representatives— 

3 (1) supports the designation of ‘‘Cystic Fibrosis 

4 Awareness Month’’; 

5 (2) congratulates the CF community for their 

6 unrelenting dedication to patients; 


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•HCON 58 IH 

1 (3) recognizes that the CF care delivery system 

2 can be a model for building better care coordination 

3 in the larger health care system; 

4 (4) acknowledges the tremendous investment 

5 and scientific achievements that have significantly 

6 improved CF patients’ lives; 

7 (5) urges researchers, developers, patients and 

8 providers to do everything possible to find a cure for 

9 this deadly disease; and 

10 (6) encourages the people of the United States 

11 to observe ‘‘Cystic Fibrosis Awareness Month’’ with 

12 appropriate ceremonies and activities that promote 

13 awareness of the disease. 

Æ 


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