Skip to main content U.S. flag
          An official website of the United States government
            Here’s how you know
          Here's how you know **The .gov means it’s official.**
                
                Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure
                you’re on a federal government site.
 **The site is secure.**
                
                The **https://** ensures that you are connecting to the official website and that any
                information you provide is encrypted and transmitted securely.


NCD Logo
    
    NCD.gov
          National Council on Disability
        An independent federal agency committed to disability policy leadership since 1978
 Menu


close About the Council
              Misson
                
                Council Members
                
                Council Staff
                
                Email Directory
                
                Council Meetings
                
                Feedback
          
        
          
            
            
            Newsroom
            
        
          
            
            Policy Advice
              Letters
                
                Reports
                
                Testimony
                
                Toolkits
                
                Progress Reports
                
                Frameworks
                
                Fact Sheets
                
                Resources
                
                FAQ
          
        
          
            
            Policy Areas
              Civil Rights
                
                CRPD
                
                Cultural Diversity
                
                Education
                
                Emergency Management
                
                Employment
                
                Financial Assistance and Incentives
                
                Health Care
                
                Housing
                
                International
                
                Long Term Services and Support
                
                Technology
                
                Transportation
                
                Youth Perspectives Font Size:
 A
      Font Size Normal
 A
      Font Size Large
 twitter logoTwitter
 instagram logoInstagram
 linkedin logoLinkedIn
 facebook logoFacebook
 youtube logoYoutube
 Contact Us
          
          Accountability Search small
      Search


Genetic Testing and the Rush to Perfection Wednesday, October 23, 2019
 
 
 Health Care
 Word Doc
 PDF
 **BACKGROUND AND SCOPE:**
Despite the growing understanding that disability is a normal part of the human experience, the lives of persons with disabilities continue to be devalued in medical decision-making. Negative biases and inaccurate assumptions about the quality of life of a person with a disability are pervasive in U.S. society and can result in the devaluation and disparate treatment of people with disabilities, and in the medical context, these biases can have serious and even deadly consequences. In this series of reports on bioethics, the National Council on Disability will explore how people with disabilities are impacted by biases and assumptions in some of the most critical healthcare issues we face, including: **Genetic testing** — This report examines the range of scientific, commercial, professional and social factors that converge around prenatal genetic testing and their effect on the lives of people with disabilities; and provides an update on the interaction between genetic testing and employment discrimination.


Budget and Performance Congressional Budget Justification
            
            Financial Audits
            
            Buy American Act
            
            Government Performance and Results Act
 Resources Bylaws
            
            Strategic Plan
            
            Authorizing Statute
 Agency Governance News
            
            FOIA
            
            Contact NCD
            
            Subscribe for NCD News
 Policies / Statements No FEAR Act Data
            
            Vulnerability Disclosure Policy
            
            View accessibility statement
            
            View Equity Action Plan


twitter logoTwitter
 instagram logoInstagram
 linkedin logoLinkedIn
 facebook logoFacebook
 youtube logoYoutube
 
 Phone


NCD.gov
        An official website of the
          National Council on Disability