Federal Register / Vol. 77, No. 59 / Tuesday, March 27, 2012 / Notices 18247 

of racial/ethnic health status and health 

care disparities in the general 

population.’’ 

Additionally, OMH can use the 

findings about progress made in raising 

awareness to identify collaborative 

partners in the federal government, at 

the state and local levels, among 

businesses and non-profits, and among 

the faith community, in order to reach 

a wider audience. Further, these results 

can be used by program decision-makers 

and policy-makers, within and outside 

of HHS, who are interested in capturing 

progress made over time as HHS 

disseminates information to the U.S. 

population that confirms the existence, 

and societal effects, of racial and ethnic 

health disparities. 

ESTIMATED ANNUALIZED BURDEN TABLE

Type of respondent Number of 

respondents* 

Number of 

responses 

per 

respondent 

Average 

burden per 

response 

(in hours) 

Total 

burden hours 

General Population .......................................................................................... 3,159 1 14/60 737 

Physician .......................................................................................................... 340 1 14/60 79 

Total .......................................................................................................... ........................ ........................ ........................ 816 

* Based on actual completion rates from the 2010 OMH/NORC survey. 

Keith A. Tucker, 

Office of the Secretary, Paperwork Reduction 

Act Reports Clearance Officer. 

[FR Doc. 2012–7287 Filed 3–26–12; 8:45 am] 

BILLING CODE 4150–29–P 

DEPARTMENT OF HEALTH AND 

HUMAN SERVICES 

Request for Comments on Issues of 

Privacy and Access With Regard to 

Human Genome Sequence Data 

AGENCY: The Presidential Commission 

for the Study of Bioethical Issues, Office 

of the Secretary, Department of Health 

and Human Services. 

ACTION: Notice. 

SUMMARY: The Presidential Commission 

for the Study of Bioethical Issues is 

requesting public comment on the 

ethical issues raised by the ready 

availability of large-scale human 

genome sequence data, with regard to 

privacy and data access and the 

balancing of individual and societal 

interests. 

DATES: To assure consideration, 

comments must be received by May 25, 

2012. Comments received after this date 

will be considered only as time permits. 

ADDRESSES: Individuals, groups, and 

organizations interested in commenting 

on this topic may submit comments by 

email to info@bioethics.gov or by mail to 

the following address: Public 

Commentary, The Presidential 

Commission for the Study of Bioethical 

Issues, 1425 New York Ave. NW., Suite 

C–100, Washington, DC 20005. 

FOR FURTHER INFORMATION CONTACT: Cary 

Scheiderer, Senior Policy and Research 

Analyst, The Presidential Commission 

for the Study of Bioethical Issues, 1425 

New York Avenue NW., Suite C–100, 

Washington, DC 20005. Telephone: 

202–233–3960. Email: 

cary.scheiderer@bioethics.gov. 

Additional information may be obtained 

at http://www.bioethics.gov. 

SUPPLEMENTARY INFORMATION: On 

November 24, 2009, the President 

established The Presidential 

Commission for the Study of Bioethical 

Issues (Commission) to advise him on 

bioethical issues generated by novel and 

emerging research in biomedicine and 

related areas of science and technology. 

The Commission is charged to identify 

and promote policies and practices that 

assure ethically responsible conduct of 

scientific research and healthcare 

delivery. Undertaking these duties, the 

Commission seeks to identify and 

examine specific bioethical, legal, and 

social issues related to potential 

scientific and technological advances; 

examine diverse perspectives and 

possibilities for international 

collaboration on these issues; and 

recommend legal, regulatory, or policy 

actions as appropriate. 

The Commission is examining issues 

of privacy and access as pertains to 

large-scale human genome sequence 

data, including whole exome and whole 

genome data. As a result of the 

tremendous technological advances that 

have dramatically reduced the cost of 

sequencing, the science is at a point 

where relatively inexpensive, rapid 

sequencing of whole human genomes 

appears not only likely, but imminent. 

This prospect raises many questions for 

the scientific, medical, ethics, and 

patient communities related to how this 

information can and ought be collected, 

used, and governed. At the February 

2012 meeting, the Commission decided 

to focus specifically on those questions 

related to privacy and data access and 

the balancing of individual and societal 

interests. 

The Commission will spend the next 

six months soliciting additional input 

from the scientific, ethics, and patient 

communities, as well as others, to help 

inform our deliberations of these 

important topics. The Commission will 

provide the President with a report of its 

findings and recommendations later this 

year. 

The Commission is particularly 

interested in policies, practices, 

research, and perspectives on issues of 

privacy and data access as they relate to 

the integration of large-scale human 

genome sequencing into research and 

clinical care. To this end, the 

Commission is inviting interested 

parties to provide input and advice 

through written comments. 

Among other issues, the Commission 

is interested in receiving comments on 

the implications of large-scale human 

genome sequencing for the privacy of 

individuals, research subjects, patients 

and their families; the views of those 

groups and medical professional 

communities about privacy, both as 

regards genomic information and 

evolving notions of privacy, as 

evidenced and influenced by social 

media; and models and mechanisms for 

protecting privacy, in both genetic/ 

genomic databases and biobanks, but 

also in large databases of sensitive 

information. The Commission is further 

interested in receiving comments on 

issues related to balancing individual 

and societal interests with regard to the 

sharing of and access to large-scale 

human genomic data; the views of 

patients and other stakeholders on who 

should have access to these data and 

who should control access; models and 

mechanisms for governing access to 

genomic information; the role of health 

information technology in providing 

and governing access to genomic data; 

and access to genetic/genomic 

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18248 Federal Register / Vol. 77, No. 59 / Tuesday, March 27, 2012 / Notices 

information by law enforcement 

entities. 

Please address comments by email to 

info@bioethics.gov, or by mail to the 

following address: Public Commentary, 

The Presidential Commission for the 

Study of Bioethical Issues, 1425 New 

York Avenue NW., Suite C–100, 

Washington, DC 20005. Comments will 

be publicly available, including any 

personally identifiable or confidential 

business information that they contain. 

Trade secrets should not be submitted. 

Dated: March 21, 2012. 

Wanda K. Jones, 

Principal Deputy Secretary for Health, 

Department of Health and Human Services. 

[FR Doc. 2012–7329 Filed 3–26–12; 8:45 am] 

BILLING CODE 4154–06–P 

DEPARTMENT OF HEALTH AND 

HUMAN SERVICES 

Meeting of the Advisory Committee on 

Minority Health 

AGENCY: Office of Minority Health, 

Office of the Assistant Secretary for 

Health, Office of the Secretary, 

Department of Health and Human 

Services. 

ACTION: Notice of meeting. 

SUMMARY: As stipulated by the Federal 

Advisory Committee Act, the 

Department of Health and Human 

Services (DHHS) is hereby giving notice 

that the Advisory Committee on 

Minority Health (ACMH) will hold a 

meeting. The meeting is open to the 

public. Preregistration is required for 

both public attendance and comment. 

Any individual who wishes to attend 

the meeting and/or participate in the 

public comment session should email 

acmh@osophs.dhhs.gov. 

DATES: The meeting will be held on 

Thursday, April 26, 2012 from 9 a.m. to 

5 p.m. and Friday, April 27, 2012 from 

9 a.m. to 1 p.m. 

ADDRESSES: The meeting will be held at 

the Doubletree Hotel, 8120 Wisconsin 

Avenue, Bethesda, Maryland 20814. 

FOR FURTHER INFORMATION CONTACT: Ms. 

Monica A. Baltimore, Tower Building, 

1101 Wootton Parkway, Suite 600, 

Rockville, Maryland 20852. Phone: 240– 

453–2882 Fax: 240–453–2883. 

SUPPLEMENTARY INFORMATION: In 

accordance with Public Law 105–392, 

the ACMH was established to provide 

advice to the Deputy Assistant Secretary 

for Minority Health in improving the 

health of each racial and ethnic 

minority group and on the development 

of goals and specific program activities 

of the Office of Minority Health. 

Topics to be discussed during this 

meeting will include strategies to 

improve the health of racial and ethnic 

minority populations through the 

development of health policies and 

programs that will help eliminate health 

disparities, as well as other related 

issues. 

Public attendance at the meeting is 

limited to space available. Individuals 

who plan to attend and need special 

assistance, such as sign language 

interpretation or other reasonable 

accommodations, should notify the 

designated contact person at least 

fourteen (14) business days prior to the 

meeting. Members of the public will 

have an opportunity to provide 

comments at the meeting. Public 

comments will be limited to three 

minutes per speaker. Individuals who 

would like to submit written statements 

should mail or fax their comments to 

the Office of Minority Health at least 

seven (7) business days prior to the 

meeting. Any members of the public 

who wish to have printed material 

distributed to ACMH committee 

members should submit their materials 

to the Executive Director, ACMH, Tower 

Building, 1101 Wootton Parkway, Suite 

600, Rockville, Maryland 20852, prior to 

close of business April 19, 2012. 

Dated: March 13, 2012. 

Monica A. Baltimore, 

Executive Director, Advisory Committee on 

Minority Health, Office of Minority Health, 

Office of the Assistant Secretary for Health, 

Office of the Secretary, U.S. Department of 

Health and Human Services. 

[FR Doc. 2012–7330 Filed 3–26–12; 8:45 am] 

BILLING CODE 4150–29–P 

DEPARTMENT OF HEALTH AND 

HUMAN SERVICES 

Decision To Evaluate a Petition To 

Designate a Class of Employees From 

the Winchester Engineering and 

Analytical Center in Winchester, MA, 

To Be Included in the Special 

Exposure Cohort 

AGENCY: National Institute for 

Occupational Safety and Health 

(NIOSH), Centers for Disease Control 

and Prevention, Department of Health 

and Human Services. 

ACTION: Notice. 

SUMMARY: NIOSH gives notice as 

required by 42 CFR 83.12(e) of a 

decision to evaluate a petition to 

designate a class of employees from the 

Winchester Engineering and Analytical 

Center in Winchester, Massachusetts, to 

be included in the Special Exposure 

Cohort under the Energy Employees 

Occupational Illness Compensation 

Program Act of 2000. The initial 

proposed definition for the class being 

evaluated, subject to revision as 

warranted by the evaluation, is as 

follows: 

Facility: Winchester Engineering and 

Analytical Center. 

Location: Winchester, Massachusetts. 

Job Titles and/or Job Duties: All 

employees of the Department of Energy, 

its predecessor agencies, and its 

contractors and subcontractors. 

Period of Employment: October 1, 

1952 to December 31, 1961. 

FOR FURTHER INFORMATION CONTACT: 

Stuart L. Hinnefeld, Director, Division 

of Compensation Analysis and Support, 

National Institute for Occupational 

Safety and Health, 4676 Columbia 

Parkway, MS C–46, Cincinnati, OH 

45226, Telephone 877–222–7570. 

Information requests can also be 

submitted by email to DCAS@CDC.GOV. 

John Howard, 

Director, National Institute for Occupational 

Safety and Health. 

[FR Doc. 2012–7292 Filed 3–26–12; 8:45 am] 

BILLING CODE 4163–19–P 

DEPARTMENT OF HEALTH AND 

HUMAN SERVICES 

[30-Day–12–12BK] 

Agency for Toxic Substances and 

Disease Registry; Agency Forms 

Undergoing Paperwork Reduction Act 

Review 

The Centers for Disease Control and 

Prevention (CDC) publishes a list of 

information collection requests under 

review by the Office of Management and 

Budget (OMB) in compliance with the 

Paperwork Reduction Act (44 U.S.C. 

chapter 35). To request a copy of these 

requests, call (404) 639–7570 or send an 

email to omb@cdc.gov. Send written 

comments to CDC Desk Officer, Office of 

Management and Budget, Washington, 

DC or by fax to (202) 395–5806. Written 

comments should be received within 30 

days of this notice. 

Proposed Project 

Prospective Birth Cohort Study 

Involving Environmental Uranium 

Exposure in the Navajo Nation—New— 

Agency for Toxic Substances and 

Disease Registry (ATSDR) and Centers 

for Disease Control and Prevention 

(CDC). 

Background and Brief Description 

The Navajo Nation includes 16 

million acres of New Mexico, Utah and 

Arizona. It is the largest Alaska Native/ 

mstockstill on DSK4VPTVN1PROD with NOTICES