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[Congressional Bills 118th Congress]
[From the U.S. Government Publishing Office]
[S. 3757 Reported in Senate (RS)]

<DOC>

                                                       Calendar No. 429
118th CONGRESS
  2d Session
                                S. 3757

To reauthorize the congenital heart disease research, surveillance, and 
 awareness program of the Centers for Disease Control and Prevention, 
                        and for other purposes.

_______________________________________________________________________

                   IN THE SENATE OF THE UNITED STATES

                            February 7, 2024

  Mr. Durbin (for himself, Mr. Young, Mr. Casey, Ms. Smith, and Mrs. 
  Gillibrand) introduced the following bill; which was read twice and 
  referred to the Committee on Health, Education, Labor, and Pensions

                             June 18, 2024

               Reported by Mr. Sanders, with an amendment
 [Strike out all after the enacting clause and insert the part printed 
                               in italic]

_______________________________________________________________________

                                 A BILL

 
To reauthorize the congenital heart disease research, surveillance, and 
 awareness program of the Centers for Disease Control and Prevention, 
                        and for other purposes.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

<DELETED>SECTION 1. SHORT TITLE.</DELETED>

<DELETED>    This Act may be cited as the ``Congenital Heart Futures 
Reauthorization Act of 2024''.</DELETED>

<DELETED>SEC. 2. NATIONAL CONGENITAL HEART DISEASE RESEARCH, 
              SURVEILLANCE, AND AWARENESS.</DELETED>

<DELETED>    Section 399V-2 of the Public Health Service Act (42 U.S.C. 
280g-13) is amended--</DELETED>
        <DELETED>    (1) by redesignating subsections (f) and (g) as 
        subsections (h) and (i), respectively;</DELETED>
        <DELETED>    (2) by inserting after subsection (e) the 
        following:</DELETED>
<DELETED>    ``(f) Stakeholder Workshop.--</DELETED>
        <DELETED>    ``(1) In general.--Not later than 1 year after the 
        date of enactment of the Congenital Heart Futures 
        Reauthorization Act of 2024, the Secretary shall convene a 
        workshop composed of subject matter experts, on adult patients 
        living with congenital heart disease, to--</DELETED>
                <DELETED>    ``(A) identify research gaps and 
                opportunities related to the lifelong needs of 
                congenital heart disease patients, including long-term 
                health outcomes, quality of life, mental health, and 
                health care utilization;</DELETED>
                <DELETED>    ``(B) assess the workforce capacity in the 
                United States of health care providers who treat adult 
                patients living with congenital heart disease, and 
                options to address any such shortages in such 
                workforce, which may include strategies to expand 
                fellowship training programs and support regional care 
                centers; and</DELETED>
                <DELETED>    ``(C) foster collaboration and 
                dissemination of information across Federal agencies, 
                health care providers, researchers, and patient 
                organizations.</DELETED>
        <DELETED>    ``(2) Composition.--The workshop described in 
        paragraph (1) shall be led by the Secretary, and shall involve 
        participants that include, as appropriate, stakeholders 
        representing patient organizations, health care professionals, 
        research entities, health insurance providers, accrediting 
        organizations, and relevant Federal agencies, including the 
        Centers for Disease Control and Prevention, the National 
        Institutes of Health, and the Health Resources and Services 
        Administration.</DELETED>
<DELETED>    ``(g) Report.--Not later than 3 years after the date of 
enactment of the Congenital Heart Futures Reauthorization Act of 2024, 
the Secretary shall issue a report to the Committee on Health, 
Education, Labor, and Pensions of the Senate and the Committee on 
Energy and Commerce of the House of Representatives on findings and 
recommendations of the Secretary with respect to strategies to advance 
research related to the lifelong needs of congenital heart disease 
patients and address workforce shortages of providers for adult 
patients living with congenital heart disease, and, as appropriate, 
progress made by the Secretary to implement such strategies and a plan 
for implementing such recommendations.''; and</DELETED>
        <DELETED>    (3) in subsection (i), as so redesignated, by 
        striking ``2020 through 2024'' and inserting ``2025 through 
        2029''.</DELETED>

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Congenital Heart Futures 
Reauthorization Act of 2024''.

SEC. 2. NATIONAL CONGENITAL HEART DISEASE RESEARCH, SURVEILLANCE, AND 
              AWARENESS.

    Section 399V-2 of the Public Health Service Act (42 U.S.C. 280g-13) 
is amended--
            (1) by redesignating subsections (f) and (g) as subsections 
        (h) and (i), respectively;
            (2) by inserting after subsection (e) the following:
    ``(f) Stakeholder Workshop.--
            ``(1) In general.--Not later than 1 year after the date of 
        enactment of the Congenital Heart Futures Reauthorization Act 
        of 2024, the Secretary shall convene a workshop on congenital 
        heart disease, to--
                    ``(A) identify research gaps and opportunities 
                related to the needs of adults with congenital heart 
                disease, including with respect to long-term health 
                outcomes, quality of life, mental health, and health 
                care utilization;
                    ``(B) assess the workforce capacity in the United 
                States to treat adults with congenital heart disease, 
                and options to address any shortages in such workforce, 
                which may include strategies related to fellowship 
                training programs; and
                    ``(C) foster collaboration and dissemination of 
                information related to congenital heart disease among 
                Federal agencies, health care providers, researchers, 
                patient advocates, and other relevant stakeholders.
            ``(2) Composition.--The workshop described in paragraph (1) 
        shall include relevant stakeholders, such as patient advocates, 
        health care providers, researchers, and health insurance 
        issuers, and representatives of relevant Federal agencies, 
        including the Centers for Disease Control and Prevention, the 
        National Institutes of Health, and the Health Resources and 
        Services Administration.
    ``(g) Report.--Not later than 3 years after the date of enactment 
of the Congenital Heart Futures Reauthorization Act of 2024, the 
Secretary shall issue a report to the Committee on Health, Education, 
Labor, and Pensions of the Senate and the Committee on Energy and 
Commerce of the House of Representatives on findings and 
recommendations of the Secretary with respect to strategies to advance 
research related to the needs of individuals of all ages with 
congenital heart disease and address workforce shortages of providers 
for adults with congenital heart disease, and, as appropriate, a plan 
for implementing such strategies, including any progress to date.''; 
and
            (3) in subsection (i), as so redesignated, by striking 
        ``2020 through 2024'' and inserting ``2025 through 2029''.
                                                       Calendar No. 429

118th CONGRESS

  2d Session

                                S. 3757

_______________________________________________________________________

                                 A BILL

To reauthorize the congenital heart disease research, surveillance, and 
 awareness program of the Centers for Disease Control and Prevention, 
                        and for other purposes.

_______________________________________________________________________

                             June 18, 2024

                       Reported with an amendment
```