II 

Calendar No. 429 

118TH CONGRESS 

2D SESSION S. 3757 

To reauthorize the congenital heart disease research, surveillance, and awareness program of the Centers for Disease Control and Prevention, and 

for other purposes. 

IN THE SENATE OF THE UNITED STATES 

FEBRUARY 7, 2024 

Mr. DURBIN (for himself, Mr. YOUNG, Mr. CASEY, Ms. SMITH, and Mrs. 

GILLIBRAND) introduced the following bill; which was read twice and referred to the Committee on Health, Education, Labor, and Pensions 

JUNE 18, 2024 

Reported by Mr. SANDERS, with an amendment 

[Strike out all after the enacting clause and insert the part printed in italic] 

A BILL 

To reauthorize the congenital heart disease research, surveillance, and awareness program of the Centers for Disease 

Control and Prevention, and for other purposes. 

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled, 

3 SECTION 1. SHORT TITLE. 

4 This Act may be cited as the ‘‘Congenital Heart Fu5 tures Reauthorization Act of 2024’’. 


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1 SEC. 2. NATIONAL CONGENITAL HEART DISEASE RE2 SEARCH, SURVEILLANCE, AND AWARENESS. 

3 Section 399V–2 of the Public Health Service Act (42 

4 U.S.C. 280g–13) is amended— 

5 (1) by redesignating subsections (f) and (g) as 

6 subsections (h) and (i), respectively; 

7 (2) by inserting after subsection (e) the fol8 lowing: 

9 ‘‘(f) STAKEHOLDER WORKSHOP.— 

10 ‘‘(1) IN GENERAL.—Not later than 1 year after 

11 the date of enactment of the Congenital Heart Fu12 tures Reauthorization Act of 2024, the Secretary 

13 shall convene a workshop composed of subject mat14 ter experts, on adult patients living with congenital 

15 heart disease, to— 

16 ‘‘(A) identify research gaps and opportuni17 ties related to the lifelong needs of congenital 

18 heart disease patients, including long-term 

19 health outcomes, quality of life, mental health, 

20 and health care utilization; 

21 ‘‘(B) assess the workforce capacity in the 

22 United States of health care providers who 

23 treat adult patients living with congenital heart 

24 disease, and options to address any such short25 ages in such workforce, which may include 


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1 strategies to expand fellowship training pro2 grams and support regional care centers; and 

3 ‘‘(C) foster collaboration and dissemination 

4 of information across Federal agencies, health 

5 care providers, researchers, and patient organi6 zations. 

7 ‘‘(2) COMPOSITION.—The workshop described 

8 in paragraph (1) shall be led by the Secretary, and 

9 shall involve participants that include, as appro10 priate, stakeholders representing patient organiza11 tions, health care professionals, research entities, 

12 health insurance providers, accrediting organiza13 tions, and relevant Federal agencies, including the 

14 Centers for Disease Control and Prevention, the Na15 tional Institutes of Health, and the Health Re16 sources and Services Administration. 

17 ‘‘(g) REPORT.—Not later than 3 years after the date 

18 of enactment of the Congenital Heart Futures Reauthor19 ization Act of 2024, the Secretary shall issue a report to 

20 the Committee on Health, Education, Labor, and Pen21 sions of the Senate and the Committee on Energy and 

22 Commerce of the House of Representatives on findings 

23 and recommendations of the Secretary with respect to 

24 strategies to advance research related to the lifelong needs 

25 of congenital heart disease patients and address workforce 


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1 shortages of providers for adult patients living with con2 genital heart disease, and, as appropriate, progress made 

3 by the Secretary to implement such strategies and a plan 

4 for implementing such recommendations.’’; and 

5 (3) in subsection (i), as so redesignated, by 

6 striking ‘‘2020 through 2024’’ and inserting ‘‘2025 

7 through 2029’’. 

8 SECTION 1. SHORT TITLE. 

9 This Act may be cited as the ‘‘Congenital Heart Fu10 tures Reauthorization Act of 2024’’. 

11 SEC. 2. NATIONAL CONGENITAL HEART DISEASE RE12 SEARCH, SURVEILLANCE, AND AWARENESS. 

13 Section 399V–2 of the Public Health Service Act (42 

14 U.S.C. 280g–13) is amended— 

15 (1) by redesignating subsections (f) and (g) as 

16 subsections (h) and (i), respectively; 

17 (2) by inserting after subsection (e) the following: 

18 ‘‘(f) STAKEHOLDER WORKSHOP.— 

19 ‘‘(1) IN GENERAL.—Not later than 1 year after 

20 the date of enactment of the Congenital Heart Futures 

21 Reauthorization Act of 2024, the Secretary shall con22 vene a workshop on congenital heart disease, to— 

23 ‘‘(A) identify research gaps and opportuni24 ties related to the needs of adults with congenital 

25 heart disease, including with respect to long-term 


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1 health outcomes, quality of life, mental health, 

2 and health care utilization; 

3 ‘‘(B) assess the workforce capacity in the 

4 United States to treat adults with congenital 

5 heart disease, and options to address any short6 ages in such workforce, which may include strat7 egies related to fellowship training programs; 

8 and 

9 ‘‘(C) foster collaboration and dissemination 

10 of information related to congenital heart disease 

11 among Federal agencies, health care providers, 

12 researchers, patient advocates, and other relevant 

13 stakeholders. 

14 ‘‘(2) COMPOSITION.—The workshop described in 

15 paragraph (1) shall include relevant stakeholders, 

16 such as patient advocates, health care providers, re17 searchers, and health insurance issuers, and rep18 resentatives of relevant Federal agencies, including 

19 the Centers for Disease Control and Prevention, the 

20 National Institutes of Health, and the Health Re21 sources and Services Administration. 

22 ‘‘(g) REPORT.—Not later than 3 years after the date 

23 of enactment of the Congenital Heart Futures Reauthoriza24 tion Act of 2024, the Secretary shall issue a report to the 

25 Committee on Health, Education, Labor, and Pensions of 


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1 the Senate and the Committee on Energy and Commerce 

2 of the House of Representatives on findings and rec3 ommendations of the Secretary with respect to strategies to 

4 advance research related to the needs of individuals of all 

5 ages with congenital heart disease and address workforce 

6 shortages of providers for adults with congenital heart dis7 ease, and, as appropriate, a plan for implementing such 

8 strategies, including any progress to date.’’; and 

9 (3) in subsection (i), as so redesignated, by strik10 ing ‘‘2020 through 2024’’ and inserting ‘‘2025 

11 through 2029’’. 


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ssavage on LAPJG3WLY3PROD with BILLS
Calendar No. 429 

118TH CONGRESS 

2D SESSION S. 3757 

A BILL 

To reauthorize the congenital heart disease reand for other purposes. the Centers for Disease Control and Prevention, search, surveillance, and awareness program of 

JUNE 18, 2024 

Reported with an amendment 


ssavage on LAPJG3WLY3PROD with BILLS