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[Congressional Bills 118th Congress]
[From the U.S. Government Publishing Office]
[S. 3757 Introduced in Senate (IS)]

<DOC>

118th CONGRESS
  2d Session
                                S. 3757

To reauthorize the congenital heart disease research, surveillance, and 
 awareness program of the Centers for Disease Control and Prevention, 
                        and for other purposes.

_______________________________________________________________________

                   IN THE SENATE OF THE UNITED STATES

                            February 7, 2024

 Mr. Durbin (for himself and Mr. Young) introduced the following bill; 
     which was read twice and referred to the Committee on Health, 
                     Education, Labor, and Pensions

_______________________________________________________________________

                                 A BILL

 
To reauthorize the congenital heart disease research, surveillance, and 
 awareness program of the Centers for Disease Control and Prevention, 
                        and for other purposes.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Congenital Heart Futures 
Reauthorization Act of 2024''.

SEC. 2. NATIONAL CONGENITAL HEART DISEASE RESEARCH, SURVEILLANCE, AND 
              AWARENESS.

    Section 399V-2 of the Public Health Service Act (42 U.S.C. 280g-13) 
is amended--
            (1) by redesignating subsections (f) and (g) as subsections 
        (h) and (i), respectively;
            (2) by inserting after subsection (e) the following:
    ``(f) Stakeholder Workshop.--
            ``(1) In general.--Not later than 1 year after the date of 
        enactment of the Congenital Heart Futures Reauthorization Act 
        of 2024, the Secretary shall convene a workshop composed of 
        subject matter experts, on adult patients living with 
        congenital heart disease, to--
                    ``(A) identify research gaps and opportunities 
                related to the lifelong needs of congenital heart 
                disease patients, including long-term health outcomes, 
                quality of life, mental health, and health care 
                utilization;
                    ``(B) assess the workforce capacity in the United 
                States of health care providers who treat adult 
                patients living with congenital heart disease, and 
                options to address any such shortages in such 
                workforce, which may include strategies to expand 
                fellowship training programs and support regional care 
                centers; and
                    ``(C) foster collaboration and dissemination of 
                information across Federal agencies, health care 
                providers, researchers, and patient organizations.
            ``(2) Composition.--The workshop described in paragraph (1) 
        shall be led by the Secretary, and shall involve participants 
        that include, as appropriate, stakeholders representing patient 
        organizations, health care professionals, research entities, 
        health insurance providers, accrediting organizations, and 
        relevant Federal agencies, including the Centers for Disease 
        Control and Prevention, the National Institutes of Health, and 
        the Health Resources and Services Administration.
    ``(g) Report.--Not later than 3 years after the date of enactment 
of the Congenital Heart Futures Reauthorization Act of 2024, the 
Secretary shall issue a report to the Committee on Health, Education, 
Labor, and Pensions of the Senate and the Committee on Energy and 
Commerce of the House of Representatives on findings and 
recommendations of the Secretary with respect to strategies to advance 
research related to the lifelong needs of congenital heart disease 
patients and address workforce shortages of providers for adult 
patients living with congenital heart disease, and, as appropriate, 
progress made by the Secretary to implement such strategies and a plan 
for implementing such recommendations.''; and
            (3) in subsection (i), as so redesignated, by striking 
        ``2020 through 2024'' and inserting ``2025 through 2029''.
                                 <all>
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