II 

118TH CONGRESS 

2D SESSION S. 3757 

To reauthorize the congenital heart disease research, surveillance, and awareness program of the Centers for Disease Control and Prevention, and 

for other purposes. 

IN THE SENATE OF THE UNITED STATES 

FEBRUARY 7, 2024 

Mr. DURBIN (for himself and Mr. YOUNG) introduced the following bill; which 

was read twice and referred to the Committee on Health, Education, 

Labor, and Pensions 

A BILL 

To reauthorize the congenital heart disease research, surveillance, and awareness program of the Centers for Disease 

Control and Prevention, and for other purposes. 

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled, 

3 SECTION 1. SHORT TITLE. 

4 This Act may be cited as the ‘‘Congenital Heart Fu5 tures Reauthorization Act of 2024’’. 

6 SEC. 2. NATIONAL CONGENITAL HEART DISEASE RE7 SEARCH, SURVEILLANCE, AND AWARENESS. 

8 Section 399V–2 of the Public Health Service Act (42 

9 U.S.C. 280g–13) is amended— 


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1 (1) by redesignating subsections (f) and (g) as 

2 subsections (h) and (i), respectively; 

3 (2) by inserting after subsection (e) the fol4 lowing: 

5 ‘‘(f) STAKEHOLDER WORKSHOP.— 

6 ‘‘(1) IN GENERAL.—Not later than 1 year after 

7 the date of enactment of the Congenital Heart Fu8 tures Reauthorization Act of 2024, the Secretary 

9 shall convene a workshop composed of subject mat10 ter experts, on adult patients living with congenital 

11 heart disease, to— 

12 ‘‘(A) identify research gaps and opportuni13 ties related to the lifelong needs of congenital 

14 heart disease patients, including long-term 

15 health outcomes, quality of life, mental health, 

16 and health care utilization; 

17 ‘‘(B) assess the workforce capacity in the 

18 United States of health care providers who 

19 treat adult patients living with congenital heart 

20 disease, and options to address any such short21 ages in such workforce, which may include 

22 strategies to expand fellowship training pro23 grams and support regional care centers; and 

24 ‘‘(C) foster collaboration and dissemination 

25 of information across Federal agencies, health 


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1 care providers, researchers, and patient organi2 zations. 

3 ‘‘(2) COMPOSITION.—The workshop described 

4 in paragraph (1) shall be led by the Secretary, and 

5 shall involve participants that include, as appro6 priate, stakeholders representing patient organiza7 tions, health care professionals, research entities, 

8 health insurance providers, accrediting organiza9 tions, and relevant Federal agencies, including the 

10 Centers for Disease Control and Prevention, the Na11 tional Institutes of Health, and the Health Re12 sources and Services Administration. 

13 ‘‘(g) REPORT.—Not later than 3 years after the date 

14 of enactment of the Congenital Heart Futures Reauthor15 ization Act of 2024, the Secretary shall issue a report to 

16 the Committee on Health, Education, Labor, and Pen17 sions of the Senate and the Committee on Energy and 

18 Commerce of the House of Representatives on findings 

19 and recommendations of the Secretary with respect to 

20 strategies to advance research related to the lifelong needs 

21 of congenital heart disease patients and address workforce 

22 shortages of providers for adult patients living with con23 genital heart disease, and, as appropriate, progress made 

24 by the Secretary to implement such strategies and a plan 

25 for implementing such recommendations.’’; and 


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1 (3) in subsection (i), as so redesignated, by 

2 striking ‘‘2020 through 2024’’ and inserting ‘‘2025 

3 through 2029’’. 

Æ 


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