II 

109TH CONGRESS 

1ST SESSION S. 1722 

To amend the Public Health Service Act to reauthorize and extend the 

Fetal Alcohol Syndrome prevention and services program, and for other 

purposes. 

IN THE SENATE OF THE UNITED STATES 

SEPTEMBER 19, 2005 

Ms. MURKOWSKI (for herself, Mr. JOHNSON, Mr. COLEMAN, Mr. DURBIN, Mr. 

DODD, and Mrs. MURRAY) introduced the following bill; which was read 

twice and referred to the Committee on Health, Education, Labor, and 

Pensions 

A BILL 

To amend the Public Health Service Act to reauthorize and 

extend the Fetal Alcohol Syndrome prevention and services program, and for other purposes. 

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled, 

3 SECTION 1. SHORT TITLE. 

4 This Act may be cited as the ‘‘Advancing FASD Re5 search, Prevention, and Services Act’’. 

6 SEC. 2. FINDINGS. 

7 Congress makes the following findings: 
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1 (1) Fetal Alcohol Spectrum Disorders are the 

2 spectrum of serious, life-long disorders caused by 

3 prenatal exposure to alcohol, which include Fetal Al4 cohol Syndrome, Alcohol-Related Neurodevelopmen5 tal Disorder, and Alcohol-Related Birth Defects. 

6 (2) In the decades that have passed since Fetal 

7 Alcohol Syndrome was first recognized in the United 

8 States, this fully preventable condition has continued 

9 to affect American children and families. 

10 (3) Prenatal alcohol exposure can cause brain 

11 damage that produces cognitive and behavioral im12 pairments. Prenatal alcohol exposure can cause men13 tal retardation or low IQ and difficulties with learn14 ing, memory, attention, and problem-solving. It can 

15 also create problems with mental health and social 

16 interactions. 

17 (4) Prenatal alcohol exposure also can cause 

18 growth retardation, birth defects involving the heart, 

19 kidney, vision and hearing, and a characteristic pat20 tern of facial abnormalities. 

21 (5) About 13 percent of women report using al22 cohol during pregnancy even though there is no 

23 known safe level of alcohol consumption during preg24 nancy. 
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1 (6) Estimates of individuals with Fetal Alcohol 

2 Syndrome vary but are estimated to be between 0.5 

3 and 2.0 per 1,000 births. The prevalence rate is con4 siderably higher for all Fetal Alcohol Spectrum Dis5 orders: about 10 out of 1,000 births (1 percent of 

6 births). 

7 (7) Prevalence of Fetal Alcohol Spectrum Dis8 orders can be even higher in certain populations, 

9 such as Native Americans, and in certain areas, 

10 such as those characterized by low socioeconomic 

11 status. 

12 (8) Fetal Alcohol Spectrum Disorders pose ex13 traordinary financial costs to the Nation, including 

14 the cost of specialized health care, education, foster 

15 care, incarceration, job training, and general support 

16 services for individuals affected by Fetal Alcohol 

17 Spectrum Disorders. 

18 (9) Lifetime health costs for an individual with 

19 Fetal Alcohol Syndrome average $860,000, and can 

20 run as high as $4,200,000. The direct and indirect 

21 economic costs of Fetal Alcohol Syndrome in the 

22 United States were $5,400,000,000 in 2003. Total 

23 economic costs would be even higher for all Fetal Al24 cohol Spectrum Disorders. 
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1 (10) There is a great need for research, surveil2 lance, prevention, treatment, and support services 

3 for individuals with Fetal Alcohol Spectrum Dis4 orders and their families. 

5 SEC. 3. PROGRAMS FOR FETAL ALCOHOL SPECTRUM DIS6 ORDERS. 

7 Section 399H of the Public Health Service Act (48 

8 U.S.C. 280f) is amended— 

9 (1) by striking the section heading and insert10 ing the following: 

11 ‘‘SEC. 399H. PROGRAMS FOR FETAL ALCOHOL SPECTRUM 

12 DISORDERS.’’; 

13 (2) by redesignating subsections (a) through (d) 

14 as subsections (h) through (k), respectively; 

15 (3) by inserting after the section heading, the 

16 following: 

17 ‘‘(a) RESEARCH ON FAS AND RELATED DIS18 ORDERS.— 

19 ‘‘(1) IN GENERAL.—The Secretary, acting 

20 through the Director of the National Institutes of 

21 Health and in coordination with the Interagency Co22 ordinating Committee on Fetal Alcohol Syndrome, 

23 shall— 

24 ‘‘(A) establish a research agenda for Fetal 

25 Alcohol Spectrum Disorders; and 
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1 ‘‘(B) award grants, contracts, or coopera2 tive agreements to public or private nonprofit 

3 entities to pay all or part of carrying out re4 search under such agenda. 

5 ‘‘(2) TYPES OF RESEARCH.—In carrying out 

6 paragraph (1), the Secretary, acting through the Di7 rector of the National Institute of Alcohol Abuse and 

8 Alcoholism, shall conduct national and international 

9 research in coordination with other Federal agencies 

10 that includes— 

11 ‘‘(A) the identification of the mechanisms 

12 that produce the cognitive and behavioral prob13 lems associated with fetal alcohol exposure; 

14 ‘‘(B) the development of a neurocognitive 

15 phenotype for Fetal Alcohol Syndrome and Al16 cohol-Related Neurodevelopmental Disorder; 

17 ‘‘(C) the identification of biological mark18 ers that can be used to indicate fetal alcohol ex19 posure; 

20 ‘‘(D) the identification of fetal and mater21 nal risk factors that increase susceptibility to 

22 Fetal Alcohol Spectrum Disorders; 

23 ‘‘(E) the investigation of behavioral and 

24 pharmacotherapies for alcohol-dependent 
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1 women to determine new approaches for sus2 taining recovery; 

3 ‘‘(F) the development of scientific-based 

4 therapeutic interventions for individuals with 

5 Fetal Alcohol Spectrum Disorders; 

6 ‘‘(G) the development of screening instru7 ments to identify women who consume alcohol 

8 during pregnancy and the development of 

9 standards for measuring, reporting, and ana10 lyzing alcohol consumption patterns in pregnant 

11 women; and 

12 ‘‘(H) other research that the Director de13 termines to be appropriate. 

14 ‘‘(3) STUDY.—The Secretary, acting through 

15 the Director of the National Institute of Mental 

16 Health, shall— 

17 ‘‘(A) conduct a study on the behavioral 

18 disorders that may be associated with prenatal 

19 alcohol exposure; 

20 ‘‘(B) not later than 1 year after the date 

21 of enactment of the Advancing FASD Research, 

22 Prevention, and Services Act, submit to Con23 gress a report on the appropriateness of charac24 terizing Fetal Alcohol Spectrum Disorders and 
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1 their secondary behavioral disorders as mental 

2 health disorders; and 

3 ‘‘(C) conduct additional research on the 

4 epidemiology of behavior disorders associated 

5 with Fetal Alcohol Spectrum Disorders in col6 laboration with the Centers for Disease Control 

7 and Prevention. 

8 ‘‘(4) AUTHORIZATION OF APPROPRIATIONS.— 

9 There are authorized to be appropriated to carry out 

10 this subsection, such sums as may be necessary for 

11 each of fiscal years 2006 through 2010. 

12 ‘‘(b) SURVEILLANCE, IDENTIFICATION, AND PRE13 VENTION ACTIVITIES.— 

14 ‘‘(1) IN GENERAL.—The Secretary, acting 

15 through the Director of the National Center on 

16 Birth Defects and Developmental Disabilities, shall 

17 facilitate surveillance, identification, and prevention 

18 of Fetal Alcohol Spectrum Disorders as provided for 

19 in this subsection. 

20 ‘‘(2) SURVEILLANCE, IDENTIFICATION, AND

21 PREVENTION.—In carrying out this subsection, the 

22 Secretary shall— 

23 ‘‘(A) develop and implement a uniform 

24 surveillance case definition for Fetal Alcohol 

25 Syndrome and a uniform surveillance case defi-
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1 nition for Alcohol Related Neurodevelopmental 

2 Disorder; 

3 ‘‘(B) develop a comprehensive screening 

4 process for Fetal Alcohol Spectrum Disorders 

5 that covers different age, race, and ethnic 

6 groups and is based on the uniform surveillance 

7 case definitions developed under subparagraph 

8 (A); 

9 ‘‘(C) disseminate and provide the necessary 

10 training and support for the screening process 

11 developed under subparagraph (B) to— 

12 ‘‘(i) hospitals, community health cen13 ters, outpatient programs, and other ap14 propriate health care providers; 

15 ‘‘(ii) incarceration and detainment fa16 cilities; 

17 ‘‘(iii) primary and secondary schools; 

18 ‘‘(iv) social work and child welfare of19 fices; 

20 ‘‘(v) foster care providers and adop21 tion agencies; 

22 ‘‘(vi) State offices and others pro23 viding services to individuals with disabil24 ities; and 
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1 ‘‘(vii) other entities that the Secretary 

2 determines to be appropriate; 

3 ‘‘(D) conduct activities related to risk fac4 tor surveillance including the annual monitoring 

5 and reporting of alcohol consumption among 

6 pregnant women and women of child bearing 

7 age; and 

8 ‘‘(E) conduct applied public health preven9 tion research and implement strategies for re10 ducing alcohol-exposed pregnancies in women at 

11 high risk for alcohol-exposed pregnancies. 

12 ‘‘(3) AUTHORIZATION OF APPROPRIATION.— 

13 There are authorized to be appropriated to carry out 

14 this subsection, such sums as may be necessary for 

15 each of fiscal years 2006 through 2010. 

16 ‘‘(c) BUILDING STATE FASD SYSTEMS.— 

17 ‘‘(1) IN GENERAL.—The Secretary, acting 

18 through the Administrator of the Substance Abuse 

19 and Mental Health Services Administration, shall 

20 award grants, contracts, or cooperative agreements 

21 to States for the purpose of establishing or expand22 ing statewide programs of surveillance, prevention, 

23 and treatment of individuals with Fetal Alcohol 

24 Spectrum Disorders. 
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1 ‘‘(2) ELIGIBILITY.—To be eligible to receive a 

2 grant, contract, or cooperative agreement under 

3 paragraph (1) a State shall— 

4 ‘‘(A) prepare and submit to the Secretary 

5 an application at such time, in such manner, 

6 and containing such information as the Sec7 retary may reasonably require; 

8 ‘‘(B) develop and implement a statewide 

9 strategic plan for preventing and treating Fetal 

10 Alcohol Spectrum Disorders; 

11 ‘‘(C) consult with public and private non12 profit entities with relevant expertise on Fetal 

13 Alcohol Spectrum Disorders within the State, 

14 including— 

15 ‘‘(i) parent-led groups and other orga16 nizations that support and advocate for in17 dividuals with Fetal Alcohol Spectrum Dis18 orders; and 

19 ‘‘(ii) Indian tribes and tribal organiza20 tions; and 

21 ‘‘(D) designate an individual to serve as 

22 the coordinator of the State’s Fetal Alcohol 

23 Spectrum Disorders program. 
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1 ‘‘(3) STRATEGIC PLAN.—The statewide stra2 tegic plan prepared under paragraph (2)(B) shall in3 clude— 

4 ‘‘(A) the identification of existing State 

5 programs and systems that could be used to 

6 identify and treat individuals with Fetal Alcohol 

7 Spectrum Disorders and prevent alcohol con8 sumption during pregnancy, such as— 

9 ‘‘(i) programs for the developmentally 

10 disabled, the mentally ill, and individuals 

11 with alcohol dependency; 

12 ‘‘(ii) primary and secondary edu13 cational systems; 

14 ‘‘(iii) judicial systems for juveniles 

15 and adults; 

16 ‘‘(iv) child welfare programs and so17 cial service programs; and 

18 ‘‘(v) other programs or systems the 

19 State determines to be appropriate; 

20 ‘‘(B) the identification of any barriers for 

21 individuals with Fetal Alcohol Spectrum Dis22 orders or women at risk for alcohol consump23 tion during pregnancy to access the programs 

24 identified under subparagraph (A); and 
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1 ‘‘(C) proposals to eliminate barriers to pre2 vention and treatment programs and coordinate 

3 the activities of such programs. 

4 ‘‘(4) USE OF FUNDS.—Amounts received under 

5 a grant, contract, or cooperative agreement under 

6 paragraph (1) shall be used for one or more of the 

7 following activities: 

8 ‘‘(A) Establishing a statewide surveillance 

9 system. 

10 ‘‘(B) Collecting, analyzing and interpreting 

11 data. 

12 ‘‘(C) Establishing a diagnostic center. 

13 ‘‘(D) Developing, implementing, and evalu14 ating population-based and targeted prevention 

15 programs for Fetal Alcohol Spectrum Dis16 orders, including public awareness campaigns. 

17 ‘‘(E) Referring individuals with Fetal Alco18 hol Spectrum Disorders to appropriate support 

19 services. 

20 ‘‘(F) Developing and sharing best practices 

21 for the prevention, identification, and treatment 

22 of Fetal Alcohol Spectrum Disorders. 

23 ‘‘(G) Providing training to health care pro24 viders on the prevention, identification, and 

25 treatment of Fetal Alcohol Spectrum Disorders. 
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1 ‘‘(H) Disseminating information about 

2 Fetal Alcohol Spectrum Disorders and the 

3 availability of support services to families of in4 dividuals with Fetal Alcohol Spectrum Dis5 orders. 

6 ‘‘(I) Other activities determined appro7 priate by the Secretary. 

8 ‘‘(5) MULTI-STATE PROGRAMS.—The Secretary 

9 shall permit the formation of multi-State Fetal Alco10 hol Spectrum Disorders programs under this sub11 section. 

12 ‘‘(6) OTHER CONTRACTS AND AGREEMENTS.— 

13 A State may carry out activities under paragraph 

14 (4) through contacts or cooperative agreements with 

15 public and private non-profit entities with a dem16 onstrated expertise in Fetal Alcohol Spectrum Dis17 orders. 

18 ‘‘(7) AUTHORIZATION OF APPROPRIATIONS.— 

19 There are authorized to be appropriated to carry out 

20 this subsection, such sums as may be necessary for 

21 fiscal years 2006 through 2010. 

22 ‘‘(d) PROMOTING COMMUNITY PARTNERSHIPS.— 

23 ‘‘(1) IN GENERAL.—The Secretary shall award 

24 grants, contracts, or cooperative agreements to eligi25 ble entities to enable such entities to establish, en-
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•S 1722 IS 

1 hance, or improve community partnerships for the 

2 purpose of collaborating on common objectives and 

3 integrating the services available to individuals with 

4 Fetal Alcohol Spectrum Disorders, such as surveil5 lance, prevention, treatment, and provision of sup6 port services. 

7 ‘‘(2) ELIGIBLE ENTITIES.—To be eligible to re8 ceive a grant, contract, or cooperative agreement 

9 under paragraph (1), an entity shall— 

10 ‘‘(A) be a public or private nonprofit enti11 ty, including— 

12 ‘‘(i) a health care provider or health 

13 professional; 

14 ‘‘(ii) a primary or secondary school; 

15 ‘‘(iii) a social work or child welfare of16 fice; 

17 ‘‘(iv) an incarceration or detainment 

18 facility; 

19 ‘‘(v) a parent-led group or other orga20 nization that supports and advocates for 

21 individuals with Fetal Alcohol Spectrum 

22 Disorders; 

23 ‘‘(vi) an Indian tribe or tribal organi24 zation; 
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1 ‘‘(vii) any other entity the Secretary 

2 determines to be appropriate; or 

3 ‘‘(viii) a consortium of any of the enti4 ties described in clauses (i) through (vii); 

5 and 

6 ‘‘(B) prepare and submit to the Secretary 

7 an application at such time, in such manner, 

8 and containing such information as the Sec9 retary may reasonably require, including assur10 ances that the entity submitting the application 

11 does, at the time of application, or will, within 

12 a reasonable amount of time from the date of 

13 application, include substantive participation of 

14 a broad range of entities that work with or pro15 vide services for individuals with Fetal Alcohol 

16 Spectrum Disorders. 

17 ‘‘(3) ACTIVITIES.—An eligible entity shall use 

18 amounts received under a grant, contract, or cooper19 ative agreement under this subsection shall carry out 

20 1 or more of the following activities: 

21 ‘‘(A) Identifying and integrating existing 

22 programs and services available in the commu23 nity for individuals with Fetal Alcohol Spec24 trum Disorders. 
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1 ‘‘(B) Conducting a needs assessment to 

2 identify services that are not available in a com3 munity. 

4 ‘‘(C) Developing and implementing com5 munity-based initiatives to prevent, diagnose, 

6 treat, and provide support services to individ7 uals with Fetal Alcohol Spectrum Disorders. 

8 ‘‘(D) Disseminating information about 

9 Fetal Alcohol Spectrum Disorders and the 

10 availability of support services. 

11 ‘‘(E) Developing and implementing a com12 munity-wide public awareness and outreach 

13 campaign focusing on the dangers of drinking 

14 alcohol while pregnant. 

15 ‘‘(F) Providing mentoring or other support 

16 to families of individuals with Fetal Alcohol 

17 Spectrum Disorders. 

18 ‘‘(G) Other activities determined appro19 priate by the Secretary. 

20 ‘‘(4) AUTHORIZATION OF APPROPRIATION.— 

21 There are authorized to be appropriated to carry out 

22 this subsection, such sums as may be necessary for 

23 each of fiscal years 2006 through 2010. 

24 ‘‘(e) DEVELOPMENT OF BEST PRACTICES.— 
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1 ‘‘(1) IN GENERAL.—The Secretary, in coordina2 tion with the National Task Force on Fetal Alcohol 

3 Spectrum Disorders, shall award grants to States, 

4 Indian tribes and tribal organizations, and non5 governmental organizations for the establishment of 

6 pilot projects to identify and implement best prac7 tices for— 

8 ‘‘(A) educating children with fetal alcohol 

9 spectrum disorders, including— 

10 ‘‘(i) activities and programs designed 

11 specifically for the identification, treat12 ment, and education of such children; and 

13 ‘‘(ii) curricula development and 

14 credentialing of teachers, administrators, 

15 and social workers who implement such 

16 programs; 

17 ‘‘(B) educating judges, attorneys, child ad18 vocates, law enforcement officers, prison war19 dens, alternative incarceration administrators, 

20 and incarceration officials on how to treat and 

21 support individuals suffering from Fetal Alcohol 

22 Spectrum Disorders within the criminal justice 

23 system, including— 

24 ‘‘(i) programs designed specifically for 

25 the identification, treatment, and education 
18 

•S 1722 IS 

1 of those with Fetal Alcohol Spectrum Dis2 orders; and 

3 ‘‘(ii) curricula development and 

4 credentialing within the justice system for 

5 individuals who implement such programs; 

6 and 

7 ‘‘(C) educating adoption or foster care 

8 agency officials about available and necessary 

9 services for children with fetal alcohol spectrum 

10 disorders, including— 

11 ‘‘(i) programs designed specifically for 

12 the identification, treatment, and education 

13 of those with Fetal Alcohol Spectrum Dis14 orders; and 

15 ‘‘(ii) education and training for poten16 tial parents of an adopted child with Fetal 

17 Alcohol Spectrum Disorders. 

18 ‘‘(2) APPLICATION.—To be eligible for a grant 

19 under paragraph (1), an entity shall prepare and 

20 submit to the Secretary an application at such time, 

21 in such manner, and containing such information as 

22 the Secretary may reasonably require. 

23 ‘‘(3) AUTHORIZATION OF APPROPRIATIONS.— 

24 There are authorized to be appropriated to carry out 
19 

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1 this subsection, such sums as may be necessary for 

2 each of fiscal years 2006 through 2010. 

3 ‘‘(f) TRANSITIONAL SERVICES.— 

4 ‘‘(1) IN GENERAL.—The Secretary shall award 

5 demonstration grants, contracts, and cooperative 

6 agreements to States, Indian tribes and tribal orga7 nizations, and nongovernmental organizations for 

8 the purpose of establishing integrated systems for 

9 providing transitional services for those affected by 

10 prenatal alcohol exposure and evaluating their effec11 tiveness. 

12 ‘‘(2) APPLICATION.—To be eligible for a grant, 

13 contract, or cooperative agreement under paragraph 

14 (1), an entity shall prepare and submit to the Sec15 retary an application at such time, in such manner, 

16 and containing such information as the Secretary 

17 may reasonably require. 

18 ‘‘(3) ALLOWABLE USES.—An entity shall use 

19 amounts received under a grant, contract, or cooper20 ative agreement under paragraph (1) to— 

21 ‘‘(A) provide housing assistance to adults 

22 with Fetal Alcohol Spectrum Disorders; 

23 ‘‘(B) provide vocational training and place24 ment services for adults with Fetal Alcohol 

25 Spectrum Disorders; 
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1 ‘‘(C) provide medication monitoring serv2 ices for adults with Fetal Alcohol Spectrum 

3 Disorders; and 

4 ‘‘(D) provide training and support to orga5 nizations providing family services or mental 

6 health programs and other organizations that 

7 work with adults with Fetal Alcohol Spectrum 

8 Disorders. 

9 ‘‘(4) AUTHORIZATION OF APPROPRIATIONS.— 

10 There are authorized to be appropriated to carry out 

11 this subsection, such sums as may be necessary for 

12 each of fiscal years 2006 through 2010. 

13 ‘‘(g) COMMUNITY HEALTH CENTER INITIATIVE.— 

14 ‘‘(1) IN GENERAL.—The Secretary, acting 

15 through the Administrator of the Health Resources 

16 and Services Administration, shall award grants to 

17 community health centers acting in collaboration 

18 with States, Indian tribes, tribal organizations, and 

19 nongovernmental organizations, for the establish20 ment of a 5-year demonstration program under the 

21 direction of the Interagency Coordinating Committee 

22 on Fetal Alcohol Syndrome to implement and evalu23 ate a program to increase awareness and identifica24 tion of Fetal Alcohol Spectrum Disorders in commu-
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1 nity health centers and to refer affected individuals 

2 to appropriate support services. 

3 ‘‘(2) APPLICATION.—To be eligible to receive a 

4 grant under paragraph (1), a community health cen5 ter shall prepare and submit to the Administrator an 

6 application at such time, in such manner, and con7 taining such information as the Administrator may 

8 reasonably require. 

9 ‘‘(3) ACTIVITIES.—A community health center 

10 shall use amounts received under a grant under 

11 paragraph (1) to— 

12 ‘‘(A) provide training for health care pro13 viders on identifying and educating women who 

14 are at risk for alcohol consumption during preg15 nancy; 

16 ‘‘(B) provide training for health care pro17 viders on screening children for Fetal Alcohol 

18 Spectrum Disorders; 

19 ‘‘(C) educate health care providers and 

20 other relevant community health center workers 

21 on the support services available for those with 

22 Fetal Alcohol Spectrum Disorders and treat23 ment services available for women at risk for al24 cohol consumption during pregnancy; and 
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1 ‘‘(D) implement a tracking system that 

2 can identify the rates of Fetal Alcohol Spec3 trum Disorders by racial, ethnic, and economic 

4 backgrounds. 

5 ‘‘(4) SELECTION OF PARTICIPANTS.—The Ad6 ministrator shall determine the number of commu7 nity health centers that will participate in the dem8 onstration program under this subsection and shall 

9 select participants, to the extent practicable, that are 

10 located in different regions of the United States and 

11 that serve a racially and ethnically diverse popu12 lation. 

13 ‘‘(5) AUTHORIZATION OF APPROPRIATIONS.— 

14 There are authorized to be appropriated to carry out 

15 this subsection, such sums as may be necessary for 

16 each of fiscal years 2006 through 2010. 

17 ‘‘(6) REPORT TO CONGRESS.—Not later than 1 

18 year after completion of the demonstration program 

19 under this subsection, the Administrator shall pre20 pare and submit to Congress a report on the results 

21 of the demonstration program, including— 

22 ‘‘(A) changes in the number of women 

23 screened for and identified as at risk for alcohol 

24 consumption during pregnancy; 
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1 ‘‘(B) changes in the number of individuals 

2 identified as having a Fetal Alcohol Spectrum 

3 Disorder; and 

4 ‘‘(C) changes in the number of alcohol-con5 suming pregnant women and individuals with 

6 Fetal Alcohol Spectrum Disorders who were re7 ferred to appropriate services.’’; 

8 (4) in subsection (h)(1) (as so redesignated)— 

9 (A) in subparagraph (C), by striking 

10 ‘‘and’’ after the semicolon; 

11 (B) in subparagraph (D), by adding ‘‘and’’ 

12 after the semicolon; and 

13 (C) by adding at the end the following: 

14 ‘‘(E) national public service announce15 ments to raise public awareness of the risks as16 sociated with alcohol consumption during preg17 nancy with the purpose of reducing the preva18 lence of Fetal Alcohol Spectrum Disorders, that 

19 shall— 

20 ‘‘(i) be conducted by relevant Federal 

21 agencies under the coordination of the 

22 Interagency Coordinating Committee on 

23 Fetal Alcohol Syndrome; 

24 ‘‘(ii) be developed by the appropriate 

25 Federal agencies, as determined by the 
24 

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1 Interagency Coordinating Committee on 

2 Fetal Alcohol Syndrome taking into consid3 eration the expertise and experience of 

4 other relevant Federal agencies, and shall 

5 test and evaluate the public service an6 nouncement’s effectiveness prior to broad7 casting the announcements nationally; 

8 ‘‘(iii) be broadcast through appro9 priate media outlets, including television or 

10 radio, in a manner intended to reach 

11 women at risk of alcohol consumption dur12 ing pregnancy; and 

13 ‘‘(iv) be measured prior to broadcast 

14 of the national public service announce15 ments to provide baseline data that will be 

16 used to evaluate the effectiveness of the 

17 announcements.’’; and 

18 (5) in subsection (k) (as so redesignated)— 

19 (A) in paragraph (1), by striking ‘‘Na20 tional Task Force on Fetal Alcohol Syndrome 

21 and Fetal Alcohol Effect’’ and inserting ‘‘Na22 tional Task Force on Fetal Alcohol Spectrum 

23 Disorders’’; 

24 (B) in paragraph (3)— 
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1 (i) in subparagraph (B), by striking 

2 ‘‘and’’ after the semicolon; 

3 (ii) in subparagraph (C), by adding 

4 ‘‘and’’ after the semicolon; and 

5 (iii) by adding at the end the fol6 lowing: 

7 ‘‘(D) develop, in collaboration with the 

8 Interagency Coordinating Committee on Fetal 

9 Alcohol Syndrome, a report that identifies and 

10 describes the 10 most important actions that 

11 must be taken to reduce prenatal alcohol expo12 sure and all its adverse outcomes, and that 

13 shall— 

14 ‘‘(i) describe the state of the current 

15 epidemiology of Fetal Alcohol Spectrum 

16 Disorders, risk factors, and successful ap17 proaches in policy and services that have 

18 reduced alcohol-exposed pregnancies and 

19 outcomes; 

20 ‘‘(ii) identify innovative approaches 

21 that have worked in related areas such as 

22 tobacco control or HIV prevention that 

23 may provide models for Fetal Alcohol 

24 Spectrum Disorders prevention; 
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1 ‘‘(iii) recommend short-term and long2 term action plans for achieving the 

3 Healthy 2010 Objectives for the United 

4 States, such as increasing abstinence from 

5 alcohol among pregnant women and reduc6 ing the occurrence of Fetal Alcohol Syn7 drome; and 

8 ‘‘(iv) recommend in coordination with 

9 the National Institute on Mental Health 

10 whether Fetal Alcohol Syndrome and other 

11 prenatal alcohol disorders, or a subset of 

12 these disorders, should be included in the 

13 Diagnostic and Statistical Manual of Men14 tal Disorders.’’; and 

15 (C) by striking ‘‘Fetal Alcohol Syndrome 

16 and Fetal Alcohol Effect’’ each place that such 

17 appears and inserting ‘‘Fetal Alcohol Spectrum 

18 Disorders’’. 

19 SEC. 4. COORDINATION AMONG FEDERAL ENTITIES. 

20 Part O of title III of the Public Health Service Act 

21 (42 U.S.C. 280f et seq.) is amended by adding at the end 

22 the following: 

23 ‘‘SEC. 399K–1. COORDINATION AMONG FEDERAL ENTITIES. 

24 ‘‘(a) INTERAGENCY COORDINATING COMMITTEE ON

25 FETAL ALCOHOL SYNDROME.—The Secretary, acting 
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•S 1722 IS 

1 through the Director of the National Institute on Alcohol 

2 Abuse and Alcoholism, shall provide for the continuation 

3 of the Interagency Coordinating Committee on Fetal Alco4 hol Syndrome so that such Committee may— 

5 ‘‘(1) coordinate activities conducted by the Fed6 eral Government on Fetal Alcohol Spectrum Dis7 orders, including convening meetings, establishing 

8 work groups, sharing information, and facilitating 

9 and promoting collaborative projects among Federal 

10 agencies; and 

11 ‘‘(2) develop, in consultation with the National 

12 Task Force on Fetal Alcohol Spectrum Disorders, 

13 priority areas for years 2006 through 2010 to guide 

14 Federal programs and activities related to Fetal Al15 cohol Spectrum Disorders. 

16 ‘‘(b) COORDINATION AMONG FEDERAL ENTITIES.— 

17 ‘‘(1) IN GENERAL.—The Comptroller General of 

18 the United States shall evaluate and make rec19 ommendations regarding the appropriate roles and 

20 responsibilities of Federal entities with respect to 

21 programs and activities related to Fetal Alcohol 

22 Spectrum Disorders. 

23 ‘‘(2) COVERED ENTITIES.—The Federal entities 

24 under paragraph (1) shall include entities within the 

25 National Institutes of Health, the Centers for Dis-
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•S 1722 IS 

1 ease Control and Prevention, the Substance Abuse 

2 and Mental Health Services Administration, the 

3 Health Resources and Services Administration, the 

4 Indian Health Service, the Agency for Healthcare 

5 Research and Quality, the Interagency Coordinating 

6 Committee on Fetal Alcohol Syndrome, the National 

7 Task Force on Fetal Alcohol Spectrum Disorders, as 

8 well as the Office of Special Education and Rehabili9 tative Services in the Department of Education and 

10 the Office of Juvenile Justice and Delinquency Pre11 vention in the Department of Justice. 

12 ‘‘(3) EVALUATION.—The evaluation conducted 

13 by the Comptroller General under paragraph (1) 

14 shall include— 

15 ‘‘(A) an assessment of the current roles 

16 and responsibilities of Federal entities with pro17 grams and activities related to Fetal Alcohol 

18 Spectrum Disorders; and 

19 ‘‘(B) an assessment of whether there is du20 plication in programs and activities, conflicting 

21 roles and responsibilities, or lack of coordina22 tion among Federal entities. 

23 ‘‘(4) RECOMMENDATION.—The Comptroller 

24 General shall provide recommendations on the ap25 propriate roles and responsibilities of the Federal 
29 

•S 1722 IS 

1 entities described in paragraph (2) in order to maxi2 mize the effectiveness of Federal programs and ac3 tivities related to Fetal Alcohol Spectrum Disorders. 

4 ‘‘(5) COMPLETION.—Not later than 1 year after 

5 the date of enactment of the Advancing FASD Re6 search, Prevention, and Services Act, the Comp7 troller General shall complete the evaluation and 

8 submit to Congress a report on the findings and rec9 ommendations made as a result of the evaluation.’’. 

10 SEC. 5. SERVICES FOR INDIVIDUALS WITH FETAL ALCOHOL 

11 SYNDROME. 

12 Section 519C(b) of the Public Health Service Act (42 

13 U.S.C. 290bb–25c(b)) is amended— 

14 (1) in paragraph (11), by striking ‘‘and’’ after 

15 the semicolon; 

16 (2) by redesignating paragraph (12) as para17 graph (15); and 

18 (3) by inserting after paragraph (11), the fol19 lowing: 

20 ‘‘(12) provide respite care for caretakers of in21 dividuals with Fetal Alcohol Syndrome and other 

22 prenatal alcohol-related disorders; 

23 ‘‘(13) recruit and train mentors for adolescents 

24 with Fetal Alcohol Syndrome and other prenatal al25 cohol-related disorders; 
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•S 1722 IS 

1 ‘‘(14) provide educational and supportive serv2 ices to families of individuals with Fetal Alcohol 

3 Spectrum Disorders; and’’. 

4 SEC. 6. PREVENTION, INTERVENTION, AND SERVICES IN 

5 THE EDUCATION SYSTEM. 

6 The Secretary of Education shall direct the Office of 

7 Special Education and Rehabilitative Services to— 

8 (1) implement screening procedures and con9 duct training on a nationwide Fetal Alcohol Spec10 trum Disorders surveillance campaign for the edu11 cational system in collaboration with the efforts of 

12 the National Center on Birth Defects and Develop13 mental Disabilities under section 399H(b) of the 

14 Public Health Service Act (as added by this Act); 

15 (2) introduce curricula previously developed by 

16 the National Center on Birth Defects and Develop17 mental Disabilities and the Substance Abuse and 

18 Mental Health Services Administration on how to 

19 most effectively educate and support children with 

20 Fetal Alcohol Spectrum Disorders in both special 

21 education and traditional education settings, and in22 vestigate incorporating information about the identi23 fication, prevention, and treatment of the Disorders 

24 into teachers’ credentialing requirements; 
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•S 1722 IS 

1 (3) integrate any special techniques on how to 

2 deal with Fetal Alcohol Spectrum Disorders children 

3 into parent-teacher or parent-administrator inter4 actions, including after-school programs, special 

5 school services, and family aid programs; 

6 (4) collaborate with other Federal agencies to 

7 introduce a standardized educational unit within 

8 schools’ existing sexual and health education cur9 ricula, or create one if needed, on the deleterious ef10 fects of prenatal alcohol exposure; and 

11 (5) organize a peer advisory network of adoles12 cents in schools to discourage the use of alcohol 

13 while pregnant or considering getting pregnant. 

14 SEC. 7. PREVENTION, INTERVENTION, AND SERVICES IN 

15 THE JUSTICE SYSTEM. 

16 The Attorney General shall direct the Office of Juve17 nile Justice and Delinquency Prevention to— 

18 (1) implement screening procedures and con19 duct training on a nationwide Fetal Alcohol Spec20 trum Disorders surveillance campaign for the justice 

21 system in collaboration with the efforts of the Na22 tional Center on Birth Defects and Developmental 

23 Disabilities under section 399H(b) of the Public 

24 Health Service Act (as added by this Act); 
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•S 1722 IS 

1 (2) introduce training curricula, in collaboration 

2 with the National Center on Birth Defects and De3 velopmental Disabilities and the Substance Abuse 

4 and Mental Health Services Administration, on how 

5 to most effectively identify and interact with individ6 uals with Fetal Alcohol Spectrum Disorders in both 

7 the juvenile and adult justice systems, and inves8 tigate incorporating information about the identifica9 tion, prevention, and treatment of the disorders into 

10 justice professionals’ credentialing requirements; 

11 (3) promote the tracking of individuals entering 

12 the juvenile justice system with at-risk backgrounds 

13 that indicates them as high probability for having a 

14 Fetal Alcohol Spectrum Disorder, especially those 

15 individuals whose mothers have a high record of 

16 drinking during pregnancy as reported by the appro17 priate child protection agency; 

18 (4) educate judges, attorneys, child advocates, 

19 law enforcement officers, prison wardens, alternative 

20 incarceration administrators, and incarceration offi21 cials on how to treat and support individuals suf22 fering from Fetal Alcohol Spectrum Disorders within 

23 the criminal justice system, including— 
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•S 1722 IS 

1 (A) programs designed specifically for the 

2 identification, treatment, and education of such 

3 children; and 

4 (B) curricula development and 

5 credentialing of teachers, administrators, and 

6 social workers who implement such programs; 

7 (5) conduct a study on the inadequacies of how 

8 the current system processes children with certain 

9 developmental delays and subsequently develop alter10 native methods of incarceration and treatment that 

11 are more effective for youth offenders identified to 

12 have a Fetal Alcohol Spectrum Disorder; and 

13 (6) develop transition programs for individuals 

14 with Fetal Alcohol Spectrum Disorders who are re15 leased from incarceration. 

16 SEC. 8. MISCELLANEOUS PROVISIONS. 

17 (a) AUTHORIZATION OF APPROPRIATIONS.—Section 

18 399J of the Public Health Service Act (42 U.S.C. 280f– 

19 2) is amended by striking ‘‘the part’’ and all that follows 

20 through the period and inserting ‘‘subsections (h) through 

21 (k) of section 399H, $27,000,000 for each of fiscal years 

22 2006 through 2010’’. 

23 (b) REPEAL OF SUNSET.—Section 399K of the Pub24 lic Health Service Act (42 U.S.C. 280f–3) is repealed. 

Æ