III 

110TH CONGRESS 

2D SESSION H. CON. RES. 299 

IN THE SENATE OF THE UNITED STATES 

JULY 16, 2008 

Received and referred to the Committee on Health, Education, Labor, and 

Pensions 

CONCURRENT RESOLUTION 

Supporting the goals and ideals of National Cystic Fibrosis 

Awareness Month. 

Whereas cystic fibrosis is one of the most common life-threatening genetic diseases in the United States and one for 

which there is no known cure; 

Whereas the average life expectancy of an individual with cystic fibrosis is 37 years—an improvement relative to the 

1960s when children with cystic fibrosis 


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HCON 299 RFS 

did not live long enough to attend elementary school, but 

still unacceptably short; 

Whereas approximately 30,000 people in the United States 

have cystic fibrosis, more than half of them children; 

Whereas one of every 3,500 babies born in the United States 

is born with cystic fibrosis; 

Whereas more than 10,000,000 Americans are unknowing, 

symptom-free carriers of the cystic fibrosis gene; 

Whereas the Centers for Disease Control and Prevention recommends that all States consider newborn screening for 

cystic fibrosis; 

Whereas the Cystic Fibrosis Foundation urges all States to 

implement newborn screening for cystic fibrosis to facilitate early diagnosis and treatment which improves health 

and life expectancy; 

Whereas prompt, aggressive treatment of the symptoms of 

cystic fibrosis can extend the lives of people who have the 

disease; 

Whereas recent advances in cystic fibrosis research have produced promising leads in gene, protein, and drug therapies beneficial to people who have the disease; 

Whereas innovative research is progressing faster and is 

being conducted more aggressively than ever before, due, 

in part, to the Cystic Fibrosis Foundation’s establishment of a model clinical trials network; 

Whereas although the Cystic Fibrosis Foundation continues 

to fund a research pipeline for more than 30 potential 

therapies and funds a nationwide network of care centers 

that extend the length and quality of life for people with 


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cystic fibrosis, lives continue to be lost to this disease 

every day; 

Whereas education of the public about cystic fibrosis, including the symptoms of the disease, increases knowledge and 

understanding of cystic fibrosis and promotes early diagnosis; and 

Whereas the Cystic Fibrosis Foundation will conduct activities to honor National Cystic Fibrosis Awareness Month 

in May, 2008: Now, therefore, be it 

1 Resolved by the House of Representatives (the Senate 

2 concurring), That the Congress— 

3 (1) honors the goals and ideals of National Cys4 tic Fibrosis Awareness Month; 

5 (2) promotes further public awareness and un6 derstanding of cystic fibrosis; 

7 (3) advocates for increased support for people 

8 with cystic fibrosis and their families; 

9 (4) encourages early diagnosis and access to 

10 high-quality care for people with cystic fibrosis to 

11 improve the quality of their lives; and 


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1 (5) supports research to find a cure for cystic 

2 fibrosis by fostering enhanced research programs 

3 and expanded public-private partnerships. 

Passed the House of Representatives July 15, 2008. 

Attest: LORRAINE C. MILLER, 

Clerk. 

By ROBERT F. REEVES, 

Deputy Clerk. 


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