III 

109TH CONGRESS 

1ST SESSION S. RES. 115 

Designating May 2005 as ‘‘National Cystic Fibrosis Awareness Month’’. 

IN THE SENATE OF THE UNITED STATES 

APRIL 20, 2005 

Mr. SALAZAR (for himself, Mrs. MURRAY, Mr. COLEMAN, Mr. WYDEN, Mrs. 

DOLE, Mr. DURBIN, Mr. BUNNING, Mr. KENNEDY, and Mrs. FEINSTEIN) 

submitted the following resolution; which was referred to the Committee 

on the Judiciary 

RESOLUTION

Designating May 2005 as ‘‘National Cystic Fibrosis 

Awareness Month’’.

Whereas cystic fibrosis, characterized by chronic lung infections and digestive disorders, is a fatal lung disease; 

Whereas cystic fibrosis is 1 of the most common genetic diseases in the United States and 1 for which there is no 

known cure; 

Whereas more than 10,000,000 Americans are unknowing 

carriers of the cystic fibrosis gene and individuals must 

have 2 copies to have the disease; 

Whereas 1 of every 3,500 babies born in the United States 

is born with cystic fibrosis; 
2

•SRES 115 IS

Whereas newborn screening for cystic fibrosis has been implemented by 12 States and facilitates early diagnosis and 

treatment which improves health and longevity; 

Whereas the Centers for Disease Control and Prevention and 

the Cystic Fibrosis Foundation recommend that all 

States consider newborn screening for cystic fibrosis; 

Whereas approximately 30,000 people in the United States 

have cystic fibrosis, many of them children; 

Whereas the average life expectancy of an individual with cystic fibrosis is in the mid-thirties, an improvement from a 

life expectancy of 10 years in the 1960s, but still unacceptably short; 

Whereas prompt, aggressive treatment of the symptoms of 

cystic fibrosis can extend the lives of people who have the 

disease; 

Whereas recent advances in cystic fibrosis research have produced promising leads in gene, protein, and drug therapies beneficial to people who have the disease; 

Whereas this innovative research is progressing faster and is 

being conducted more aggressively than ever before, due 

in part to the establishment of a model clinical trials network by the Cystic Fibrosis Foundation; 

Whereas the Cystic Fibrosis Foundation marks its 50th year 

in 2005, continues to fund a research pipeline for more 

than 2 dozen potential therapies, and funds a nationwide 

network of care centers that extend the length and the 

quality of life for people with cystic fibrosis, but lives continue to be lost to this disease every day; and 

Whereas education of the public on cystic fibrosis, including 

the symptoms of the disease, increases knowledge and 
3

•SRES 115 IS

understanding of cystic fibrosis and promotes early diagnosis: Now, therefore, be it

1 Resolved, That the Senate— 

2 (1) designates May 2005 as ‘‘National Cystic 

3 Fibrosis Awareness Month’’; 

4 (2) calls on the people of the United States to 

5 promote awareness of cystic fibrosis and actively 

6 participate in support of research to control or cure 

7 cystic fibrosis, by observing the month with appro8 priate ceremonies and activities; and 

9 (3) supports the goals of— 

10 (A) increasing the quality of life for indi11 viduals with cystic fibrosis by promoting public 

12 knowledge and understanding in a manner that 

13 will result in earlier diagnoses; 

14 (B) encouraging increased resources for re15 search; and 

16 (C) increasing levels of support for people 

17 who have cystic fibrosis and their families.

Æ