Iam writing 

### to request an exemption 

### from FAR 121.311 (b) 

### for my

### daughter Kennedy

Swann and an exemption 

### lrom 121.31 1 (a) (2) 

### and 121.311 (c) (1) for 

### the certificate holder 

### who is operating 

### the airplane on which 

### we are

### flying. My

### daughter's physica! condition is as

### follows: Kennedy is

### fouryears old and suffers 

### from Spinal 

### Muscular Atrophy,type 1, a neuromuscular disease 

### that renders her unable 

### to 

### move. Kennedy cannot swallow, so she is

### fed by

### gtube. She cannot sit up, hold her head up, crawl, 

### walk, or move her arms 

### and legs at

### all. She uses 

### a non-invasive (nasal mask) bipap/ventilator 

### to help her breathe, and needs oral suctioning 

### to clear her secretions. 

### She lies in a 

### prone position, completely 

### flat, nearly all of the 

### time. She

### tolerates being upright only

### for short (15-30 minute) 

### time periods, and

### then, only with support 

### of her 

### torso and 

### with her

### ventilator in 

### use. As a result 

### of her physical 

### condition, Kennedy is physically incapable 

### of literal compliance with 

### the regulation.
I understand that 

### the regulation iswritten 

### to create 

### a high level of safety 

### for each individual 

### passenger by ensuring that 

### they are securely 

### restrained in

### their seats during all phases of

### flight. The regulation also ensures 

### that an individual 

### does not cause harm 

### to other passengers on

### the airplane by being 

### thrown into

### them during 

### turbulent or emergency conditions.
I propose 

### that my 

### daughter use 

### an E-Z-ON Modified 

### Vest (model 101M2), 

### which is a restraint system that 

### will be securely strapped across a passenger seat with 

### the seatbelt installed in the seat. One 

### of her parents or her nurse will 

### sit next

### to her at 

### alltimes to be able to tend 

### to her needs during the 

### flight, and her legs

### will rest on

### that person's lap. Alternatively, 

### we could lay her across 

### two seats, with the 

### thirdseat in

### the row occupied by 

### a parent or 

### her 

### nurse. The E-Z-ON Modified 

### Vest is dynamically 

### tested and meets 

### FMVSS213. Kennedy 

### will lie 

### across a seat for the 

### flight and her restraint 

### will not block 

### any passenge/s view of

### the "fasten 

### seat belt" sign, 

### .no smoking" sign or any required exit 

### sign. lt will 

### also be placed in such a manner 

### that its location 

### does not restrict access 

### to or use of any required 

### emergency or regular 

### exit, or of

### the aisle in

### the passenger 

### compartment. Kennedy will travel 

### with no fewer than 

### two adults 

### trained in her care. My 

### alternative proposal 

### would satisfy 

### the intended purposes of

### the regulation by ensuring 

### that Kennedy is

### securely restrained by 

### her restraint 

### system and 

### the restraint system itself is securely 

### restrained by

### the aircraft 

### seat 

### belt. This ensures 

### a high level 

### of safety 

### for Kennedy and a high level 

### of safety for 

### the other passengers and crew on

### the airplane.


### This provides an 

### equivalent level of safety to

### that provided by a

### seat belt fastened 

### around 

### Kennedy. ln

### fact, in my 

### daughtefs case, 

### safety is greatly 

### enhanced by 

### the extra 

### support and security that 

### the restraint system 

### will provide 

### for her during the entire flight. Enhancing safety 

### for Kennedy is in

### the public 

### interest. ln addition, 

### the public interest is also 

### served bythe fact that 

### the use of

### this restraint 

### system allows my daughter 

### to use commercial air

### transportation. Without 

### the support and 

### security of

### this specially 

### designed restraint system, she

### would be unable to

### fly commercially.
I believe that 

### the same reasons, concerning 

### the level of safety that 

### would be provided under 

### the proposed exemption, and that 

### the proposed exemption 

### would be in

### the public interest, that 

### the FAA has 

### foundto be sufficient, and serve as

### the basis uponwhich Exemption No. 26267 

### was issued, 

### and under 

### which operations have been 

### safelyconduc'ted, are equally applicable 

### to my petition, and are sufficient 

### to demonstrate 

### that

my proposed exemption 

### should be 

### granted.

. Ialso request that 

### the processing of

### this petition 

### notbe delayed 

### for publication and comment in

### the Federat 

### Register. We want-to 

### travdl in OctoQer of this year. 

### Thank you 

### for your

# consideration. ,
Jennifer Swann

### St. 

## Iude Heritage 

## Medical 

# Gro,ip

# 4F

June 

### 25,2014
To Whom 

### It May Concern: Kennedy 

### Swanq born December 2, 2009, is a patient 

### who has been 

### in my care 

### for nearly four years. She sutTers 

### &om Spiaal 

### Muscular Atrophy, f!"pe 

## I (SMAI). SMAI causes wealcness 

### of the

### voluntary muscles. 

### As such, Kennedy hasextrErnely 

### limited movement. Kennedy suffers 

### from dysphasia and 

### chronic respiratory 

### insufficiency. She depends on a non-invasive 

### veotilator for respiratory support and requires 

### oxygen

### while in

### flight. Kennedy is unable

### to support her 

### own bodyweight in the 

### upright position and even

# if supported 

### upright, she is prone to 

### respiratoryfatigue and 

### choking after a

### very short period 

### of time.

For the sake

### of her health and safety, Kennedy must be

### permiued totravel aboard an 

### aircraft in a 

### horizontal or recumbent 

### position, including during 

### takeoffand landing" 

### I

### art proposing that she

### travel using an 

### E-Z-On 

### Modified Vest,

### which can be mcured 

### to a seat 

### belt in the plane's passenger seat. 

### I am 

### uraware 

### of any 

### contraindications fr:r Kennedy's
use

### ofthe 

### E-Z*On 

### Modi{ied Vest. 

### Kennedy's parents have used

### this vest

### for Kennedy duringtravel 

### in their personal 

### vehicle

### without injury, and according to 

### her parentso re$earch, 

### it appeam

### to bethe

### only such system

### to secure a 

### persor 

### lying in the prone 

### position. This system also appears to be the

### only rystem that 

### would allorry Kennedy, at her age,

### totravel aboard an

### aircraft. 

### Il is a safe method 

### for reskaining her 

### during 

### flight without compromising her respiratory status. Furthermore, Kennedy 

### traveis

### with no fewer than

### two adults trained 

### in her care. 

### This is

### typically both parents, or one parent and
a nurse. Kennedy plans

### totravel

### with her

### family in October, 2014, 

### Your expeditieus handling

## of this exemption 

### petition is appreciated. Please contact me

### with questions at 

### {714) 577- 6677.

Sincerely,



## *?:,nT fr:Ji'ff",irsrrh 

## Foidnhn 4Il0O Ross HiYe Y;rba Linda, CA92886 

### n4-$n-ffi77 P,fi- Box4"138


### . Fullerton. Cg

### gl*i+-*tS8