June 29, 2010 

VIA RULEMAKING PORTAL 

Office of Consumer Information and Insurance Oversight 

Department of Health and Human Services 

ATTN: OCCIO-9994-IFC 

PO Box 8016 

Baltimore, MD 21244-1850 

Dear Sir/Madam: 

 Thank you for this opportunity to comment on interim final rules implementing 

sections of the Patient Protection and Affordable Care Act sections 2704 relating to preexisting condition exclusions; 2711 relating to lifetime and annual limits on benefits; 2712 

relating to rescissions; and 2719A relating to patient protections. 

 Advocacy for Patients with Chronic Illness, Inc. is a 501(c)(3) tax exempt 

organization that provides free information, advice, and advocacy services to patients with 

chronic illnesses nationwide. Of particular relevance here, we assist people with chronic 

illnesses to find health insurance that covers their pre-existing conditions, appeal insurance 

company denials of coverage, including denials of coverage for out-of-network emergency 

services, reverse rescissions, and strategize around lifetime and annual limits on benefits. 

Based on our experience working with thousands of patients nationwide, we are uniquely 

qualified to comment on the interim final rules. 

Lybba is a 501(c)(3) tax exempt internet-based platform whose work intersects 

across three areas: translational research – speeding the adoption of laboratory and clinical 

insights through more effective collaboration, data exploration, and pattern analysis; patient 

empowerment – improving people’s ability to choose the best care for themselves through 

access to the most helpful people and information; and clinical improvement – improving 

quality of care and reducing costs through better understanding of one’s own practice and 

how it compares with other practices. 

It is from these perspectives that we offer the following comments. 

 As a whole, we are heartened by the interim final rules. 29 C.F.R. § 2590.701-2704. 

The regulatory implementation of the statutory elimination of pre-existing condition 

exclusions beginning in 2014, and beginning at the start of the next plan or policy year after 

September 23, 2010 for individuals under age 19, is a milestone for the consumers we 

serve, all of whom by definition have pre-existing conditions. We cannot overstate the 

importance of this change in the law. 

 Similarly, the regulatory implementation of the statutory elimination of lifetime and 

annual limits on benefits in 29 C.F.R. § 2590.715.2711 will have tremendous significance for 

patients with chronic illnesses, many of whom have had to change jobs repeatedly due 

solely to a limitation on benefits. In particular, we applaud the implementation of the 
U.S. Department of Labor 

July 2, 2010 

Page 2 of 2 

phase-out of annual limits between now and 2014, when such limits will be banned entirely. 

As discussed in great depth in the preamble to the rules, the minimum annual limits for plan 

or policy years beginning on September 23, 2010, September 23, 2011, and September 23, 

2012 are sufficient to protect patients without unduly burdening plans and issuers of 

insurance. 

 We do wish to offer one suggestion, however. The section of the rules that pertains 

to cost-sharing requirements for out-of-network emergency services provides that plans and 

issuers must pay out-of-network providers an amount equal to the greater of the median innetwork reimbursement rate, the reasonable and customary reimbursement rate, or the 

Medicare rate for such services. 29 C.F.R. §§ 2590.715-2719A(b)(3)(i)(A), (B) and (C). As 

a general rule, consumers do not have access to information regarding reimbursement 

rates. We repeatedly have attempted to challenge an insurer’s representation of the 

reasonable and customary rate for out-of-network services. Other than pointing to the 

particular out-of-network provider’s usual and customary rate, we have been unable to 

locate data that would assist us to demonstrate that the insurer’s representation of usual 

and customary rates is unreasonably low. This problem has been well documented. See, 

e.g., “A Rip Off by Health Insurers?” New York Times Editorial (February 18, 2008). We 

therefore recommend that the Departments consider ways in which consumers might be 

better informed regarding reimbursement rates so that they can enforce these rules. 

 At the very least, we believe that, in any explanation of benefits relating to out-ofnetwork emergency services, the insurer should have to disclose (1) the median rate; (2) 

the usual and customary rate; and (3) the Medicare rate. In addition, upon request, a 

consumer should be provided with data supporting these rates, and the explanation of 

benefits should inform consumers that they have a right to request such data. If the rules 

regarding cost-sharing for out-of-network emergency services are to have teeth, the playing 

field between consumers and plans/issuers must be leveled. By requiring disclosure of ratesetting data, the cost-sharing requirements would be strengthened significantly without 

overly burdening insurers, who, under the rules, will have to have such data at hand, 

making disclosure nothing more than a ministerial act. 

 Again, notwithstanding this one suggestion, we wish to register our support for the 

approach taken in the interim rules. Thank you for allowing us to comment on these critical 

reforms. We are confident that they will greatly enhance the lives and the health of the 

thousands of patients we serve. 

 

 Sincerely, 

Jesse Dylan 

Founder 

Lybba 

8330 West 3rd Street 

Los Angeles, CA 90048 

(323) 653-2300 

http://www.lybba.org

Jennifer C. Jaff, Esq. 

Executive Director 

Advocacy for Patients with Chronic Illness 

18 Timberline Drive 

Farmington, CT 06032 

(860) 674-1370 

http://www.advocacyforpatients.org