| **APPENDIX**

Office on Women’s Health in theDepartment of Health and Human Services

The Office on Women’s Health in the Department ofHealth and Human Services was established to redress the inequities in research, healthservices, and education that have placed the health of American women at risk. Its missionis to direct, stimulate, and coordinate women’s health research, health careservices, and public and health care professional education and training across theagencies and offices of the U.S. Department of Health and Human Services and tocollaborate with other government organizations, foundations, private industry, andconsumer and health care professional groups to advance women’s health. The focalpoint for women’s health activities in the Department of Health and Human Services,the Office on Women’s Health is working to improve the health of American women inthis decade and beyond into the 21st century. 

Congressional Caucus on Women’s Issues

The Congressional Caucus on Women’s Issues was foundedby the women members of Congress in 1977 as a bipartisan legislative service organizationdedicated to promoting women’s economic, health, legal, and educational concerns. TheCaucus, whose membership is comprised entirely of Members of Congress, serves as anadvocate on behalf of women’s rights. The primary purpose of the organization is topromote legislation to improve the status of women and eliminate discrimination fromfederal programs and policies. 

Consortium of Multiple Sclerosis Centers

The Consortium of Multiple Sclerosis Centers (CMSC) wasestablished in 1987 to enhance collaboration by the foremost Multiple Sclerosis Centers inNorth America. Its members are comprehensive multiple sclerosis research and treatmentcenters, MS clinics, corporations and individual health care providers with a specialinterest in multiple sclerosis. The Consortium’s mission is to disseminateinformation to clinicians, increase resources and opportunities for research, and advancethe standard of care for people with multiple sclerosis. By facilitating cooperation andcommunication among care givers and researchers, the CMSC plays a prominent role inhelping to solve the mysteries of MS and improving the quality of life for MS patients andtheir families. 

NationalMultiple Sclerosis Society

The National Multiple Sclerosis Society is dedicated toending the devastating effects of MS on individuals, families, the community and theeconomy. The Society serves more than a half million members annually through its 50 statenetwork of 136 chapters and branches, and is part of a worldwide movement in over 40countries. Since its inception in 1946, the Society has invested a total of some $200million in biomedical research to solve the puzzle of MS, and has been supporting servicesto people with MS and their families. The National Multiple Sclerosis Society is viewed asthe world’s most comprehensive resource on MS-related information, research andservice programs. 

LupusFoundation of America

The Lupus Foundation of America (LFA) was incorporated as anon-profit health agency in 1977. The purpose of the LFS is to assist local chapters intheir efforts to provide supportive services to individuals living with lupus, to educatethe public about lupus, and to support research into the cause and cure of lupus. TheLupus Foundation of America is the largest lupus group in the world with over 90 localchapters serving thousands of persons throughout the U.S. and 73 International AssociatedGroups in 37 countries worldwide. 

SclerodermaResearch Foundation

The Scleroderma Research Foundation is the onlyorganization in the nation dedicated exclusively to finding a cure for this little-knownbut wide spread disease which affects approximately 500,000 Americans, over 80% of whomare women. To understand and solve the mystery of scleroderma, the Foundation put togethera select team of top scientific, business, and biomedical advisors to design a newapproach to disease research called "Cure Advocacy." Now with two nationalscleroderma research centers and a team of outstanding scientists, the foundation has madeincredible progress in advancing the basic science of scleroderma. 

Sjogren’sSyndrome Foundation

The Sjogren’s Syndrome Foundation, founded in 1983, isthe clearinghouse for medical information and is the recognized national advocate forSjogren’s syndrome. The Foundation’s mission is to educate patients and theirfamilies about Sjogren’s syndrome, to increase public and professional awareness ofSjogren’s syndrome, and to encourage research in new treatments and a cure. Inaddition, the Foundation provides patients practical information and coping strategiesthat minimize the effects of Sjogren’s syndrome. 

*Healthy Women 2000 Series*Office on Women’s Health Department of Health and Human Services

Honorary Congressional Committee
Senator Barbara Boxer Representative David HobsonSenator Thad CochranRepresentative Martin HokeSenator Dianne FeinsteinRepresentative Steny HoyerSenator Charles GrassleyRepresentative Sheila Jackson-leeSenator Tom HarkinRepresentative William JeffersonSenator Mark HatfieldRepresentative Nancy JohnsonSenator Fritz HollingsRepresentative Marcy KapturSenator Kay Bailey HutchisonRepresentative Sue KellySenator Daniel K. InouyeRepresentative Joseph KennellySenator James JeffordsRepresentative Barbara KennedySenator Nancy KassebaumRepresentative Gerald KleczkaSenator Patrick LeahyRepresentative Scott KlugSenator Trent LottRepresentative Greg LaughlinSenator Barbara A. MikulskiRepresentative John LewisSenator Carol Moseley-BraunRepresentative John LinderSenator Patty MurrayRepresentative Nita LoweySenator Charles S. RobbRepresentative Jim McDermottSenator John D. RockefellerRepresentative Carrie Meek Senator Alan SimpsonRepresentative Jan MeyersSenator Olympia J. SnoweRepresentative Dan MillerSenator Arlen SpecterRepresentative Patsy MinkSenator Strom ThurmondRepresentative Susan MolinariRepresentative William P. BakerRepresentative Connie MorellaRepresentative Cass BallengerRepresentative L.F. PayneRepresentative Michael BilirakisRepresentative Nancy PelosiRepresentative Sanford D. BishopRepresentative John PorterRepresentative Thomas Bliley, Jr.Representative Deborah PryceRepresentative Corrine BrownRepresentative Bill RichardsonRepresentative Sherrod BrownRepresentative Marge RoukemaRepresentative John BryantRepresentative Lucille Roybal-AllardRepresentative Dan BurtonRepresentative Bernard SandersRepresentative Benjamin CardinRepresentative Patricia SchroederRepresentative Michael CastleRepresentative Jose SerranoRepresentative Jim ChapmanRepresentative Louise SlaughterRepresentative Eva ClaytonRepresentative Linda SmithRepresentative Larry CombestRepresentative Charles StenholmRepresentative Pat DannerRepresentative Louis StokesRepresentative Ron DellumsRepresentative Gerry StuddsRepresentative Jennifer DunnRepresentative James TalentRepresentative Anna G. EshooRepresentative Edolphus TownsRepresentative Lane EvansRepresentative Fred UptonRepresentative Bob FilnerRepresentative Nydia M. VelazquezRepresentative Elizabeth FurseRepresentative Barbara VucanovichRepresentative Paul E. GillmorRepresentative Henry WaxmanRepresentative Porter GossRepresentative Lynn WoolseyRepresentative Jim GreenwoodRepresentative Ron WydenRepresentative Luis GutierrezRepresentative Maxine WatersRepresentative J. Denis Hastert
*Healthy Women 2000* Honorary AdvisoryCommittee
**Co-Chairs:**Nanci DomeniciMary Beth QuinnLinda DaschleLinda DooleyAlma RangelJane GephardtKimberly Olson DorganLandra ReidKatherine Cameron PorterKendel S. EhrlichJoseph RiversCatherine StevensChris EnglishLynda Johnson RobbBarbara EverettFranki RobertsJane Hershey AbrahamCorrine GanskeSharon Percy RockefellerEdward T. Allard IIISenator Karen L. GillmorSally Johnston RoemerSharon ArcherNancy HamiltonJoan Teaque RoseKaren BaldacciLynn HefleyRichard W. Roukema, MDElsie BarrettMike HeflinSylvia SaboLaura BatemanIlene Marder HincheyJane O’Meara SandersDolores BeilensonCarolyn HobsonCheryl SesenbrennerTamra BentsenGwen HoldenJeanne Hurley SimonLou B. BevillPeatsy HollingsAnn SimpsonEvelyn BilirakisNini HornLaura SkaggsMary Virginia BlileyAndrea Green JeffersonJane SprattRichard BlumJoeanne W. JonesCynthia StenholmStewart BoxerTess KlugLaurie A StupakLois BreauxPatricia KempthorneBetty Ann TannerSuzie BrewsterSandie KnollenbergJanet WaxmanBecky BroderPatricia LaFalceSheila WellstoneNan BrownGinger LaughlinCarol WilliamsBonnie BryanBarbara LevinJane CastleRoseMarie Lipinski***Healthy Women 2000***Betty ChapmanTricia Lott**Planning Committee**Mary ClementGloria Martini**Office on Women’s Health**Julia ClingerRuthie McIntoshRose CochranCarol MeyersSaralyn Mark, MDAmy ColemanGlenda MillerTeddi Fine, MAGeorgia CostelloKaren MingeFrances E. Ashe-Goins, RN, MPHPeggy DavisMary MoranDoralie Segal, MSRoscoe DellumsElizabeth B. MoynihanSandi LoweryLori DeutschNancy MurkowskiSarah StuartSuzie DicksPatricia OxleyDebbie DingellHarriet PresslerLibby DoggettDede Petri
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