IB 

Union Calendar No. 371 

111TH CONGRESS 

2D SESSION H. R. 2408 

[Report No. 111–631] 

To expand the research and awareness activities of the National Institute 

of Arthritis and Musculoskeletal and Skin Diseases and the Centers 

for Disease Control and Prevention with respect to scleroderma, and 

for other purposes. 

IN THE HOUSE OF REPRESENTATIVES 

MAY 14, 2009 

Mrs. CAPPS (for herself, Mr. EHLERS, Mr. HINCHEY, Mr. MASSA, Mr. 

MCGOVERN, Mr. MOORE of Kansas, Mr. MURPHY of Connecticut, Ms. 

LINDA T. SA ́NCHEZ of California, Mr. STEARNS, and Mr. TONKO) introduced the following bill; which was referred to the Committee on Energy 

and Commerce 

SEPTEMBER 28, 2010 

Additional sponsors: Ms. ROYBAL-ALLARD, Mr. HOEKSTRA, Mr. ISRAEL, Mrs. 

MILLER of Michigan, Mrs. BONO MACK, Mr. UPTON, Ms. WOOLSEY, Mr. 

MAFFEI, Mr. HALL of Texas, Mr. WEXLER, Mr. PIERLUISI, Mrs. 

MCCARTHY of New York, Ms. KILPATRICK of Michigan, Mr. CONYERS, 

Mr. PETERS, Mr. KILDEE, Mr. MCCOTTER, Mr. LINCOLN DIAZ-BALART

of Florida, Mr. HARE, Mr. BISHOP of New York, Mr. CAMP, Mrs. 

CAPITO, Mr. HALL of New York, Mr. MCMAHON, Mr. ARCURI, Mr. 

SERRANO, Mr. ACKERMAN, Mr. CROWLEY, Mr. KING of New York, Mr. 

NADLER of New York, Mr. ENGEL, Mr. MURPHY of New York, Mr. GORDON of Tennessee, Mrs. MALONEY, Mr. RYAN of Ohio, Mr. MCHUGH, 

Mr. TOWNS, Ms. ROS-LEHTINEN, Mr. RANGEL, Mr. TERRY, Mrs. 

LOWEY, Ms. BALDWIN, Mr. ROTHMAN of New Jersey, Mr. MEEKS of 

New York, Mr. SMITH of New Jersey, Mr. SCHAUER, Mr. MCCARTHY of 

California, Mr. NUNES, Mr. CALVERT, Mr. CULBERSON, Mr. WEINER, 

Mr. SESTAK, Mr. LUETKEMEYER, Mr. REYES, Ms. SUTTON, Mr. 

MCKEON, Ms. ZOE LOFGREN of California, Mr. TIERNEY, Mr. DAVIS of 

Illinois, Ms. SLAUGHTER, Mr. HIGGINS, Ms. CLARKE, Ms. CHU, Ms. 

VELA ́ZQUEZ, Mr. DENT, Mr. ROGERS of Michigan, Mr. DINGELL, Mrs. 

NAPOLITANO, Mr. ROSS, Mr. HASTINGS of Florida, Mr. OWENS, Mr. 


srobinson on DSKHWCL6B1PROD with BILLS
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•HR 2408 RH

ORTIZ, Mr. MEEK of Florida, Mr. LATOURETTE, Mr. COHEN, Mr. 

COURTNEY, Mr. CARNEY, Mr. LARSON of Connecticut, Ms. RICHARDSON, 

Mr. SIRES, Mr. LOBIONDO, Mr. FILNER, Mr. LEE of New York, Mr. 

HIMES, Mr. BOCCIERI, Ms. DELAURO, Mr. GONZALEZ, Mr. CUMMINGS, 

Mr. WALDEN, Mr. OLVER, Mrs. CHRISTENSEN, Mr. MORAN of Virginia, 

Mrs. DAHLKEMPER, Mr. FRANK of Massachusetts, Mr. PATRICK J. MURPHY of Pennsylvania, and Mr. PLATTS

SEPTEMBER 28, 2010 

Reported with an amendment, committed to the Committee of the Whole 

House on the State of the Union, and ordered to be printed 

[Strike out all after the enacting clause and insert the part printed in italic] 

[For text of introduced bill, see copy of bill as introduced on May 14, 2009] 

A BILL 

To expand the research and awareness activities of the National Institute of Arthritis and Musculoskeletal and Skin 

Diseases and the Centers for Disease Control and Prevention with respect to scleroderma, and for other purposes. 


srobinson on DSKHWCL6B1PROD with BILLS
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•HR 2408 RH

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled, 

3 SECTION 1. SHORT TITLE. 

4 This Act may be cited as the ‘‘Scleroderma Research 

5 and Awareness Act of 2010’’. 

6 SEC. 2. NATIONAL INSTITUTE OF ARTHRITIS AND MUS7 CULOSKELETAL AND SKIN DISEASES; 

8 SCLERODERMA RESEARCH EXPANSION. 

9 Part B of title IV of the Public Health Service Act 

10 (42 U.S.C. 284 et seq.) is amended by adding at the end 

11 the following: 

12 ‘‘SEC. 409K. SCLERODERMA RESEARCH. 

13 ‘‘The Director of NIH may expand, intensify, and co14 ordinate the activities of the National Institutes of Health 

15 with respect to scleroderma, with particular emphasis on 

16 the following: 

17 ‘‘(1) Research focused on the etiology of 

18 scleroderma and the development of new treatment 

19 options. 

20 ‘‘(2) Clinical research to evaluate new treatments 

21 options. 

22 ‘‘(3) Basic research on the relationship between 

23 scleroderma and secondary conditions such as pul24 monary hypertension, gastroparesis, Raynaud’s pheVerDate Mar 15 2010 21:54 Sep 28, 2010 Jkt 089200 PO 00000 Frm 00003 Fmt 6652 Sfmt 6203 E:\BILLS\H2408.RH H2408

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•HR 2408 RH

1 nomenon, Sjo ̈gren’s Syndrome, and other diseases as 

2 determined by the Director.’’. 

3 SEC. 3. PROMOTING PUBLIC AWARENESS OF 

4 SCLERODERMA. 

5 Part P of title III of the Public Health Service Act 

6 (42 U.S.C. 280g et seq.) is amended by adding at the end 

7 the following: 

8 ‘‘SEC. 399V–5. PROMOTING PUBLIC AWARENESS OF 

9 SCLERODERMA. 

10 ‘‘The Secretary may carry out an educational cam11 paign to increase public awareness of scleroderma. Print, 

12 video, and Web-based materials distributed through this 

13 campaign may include— 

14 ‘‘(1) basic information on scleroderma and its 

15 symptoms; and 

16 ‘‘(2) information on— 

17 ‘‘(A) the incidence and prevalence of 

18 scleroderma; 

19 ‘‘(B) diseases and conditions affiliated with 

20 scleroderma; or 

21 ‘‘(C) the importance of early diagnosis and 

22 treatment of scleroderma.’’. 


srobinson on DSKHWCL6B1PROD with BILLS

srobinson on DSKHWCL6B1PROD with BILLS
Union Calendar No. 371 

111TH CONGRESS 

2D SESSION H. R. 2408 

[Report No. 111–631] 

A BILL 

To expand the research and awareness activities of 

scleroderma, and for other purposes. Disease Control and Prevention with respect to skeletal and Skin Diseases and the Centers for the National Institute of Arthritis and MusculoSEPTEMBER 28, 2010 

Reported with an amendment, committed to the Comand ordered to be printed mittee of the Whole House on the State of the Union, 


srobinson on DSKHWCL6B1PROD with BILLS