Produced by The

National Rehabilitation

Information Center

A project funded by The National Institute on Disability and Rehabilitation Research, project number ED-08-CO-0095.

NIDRR

Program

Directory

2008

National Institute on Disability and Rehabilitation Research

Program Directory 2008

Produced by the

National Rehabilitation Information Center

Landover, MD

Mark X. Odum

Director

Jessica H. Chaiken

Media and Public Education Manager

Catherine E. Graves

Media Specialist
The full text of this public domain publication is available at the NARIC’s home page at

www.naric.com and in alternate formats upon request. For more information, please contact us at:

NARIC

8201 Corporate Drive, Suite 600

Landover, MD 20785

800/346-2742 or 301/459-5900 (Voice)

or 301/459-5984 (TTY).
Contents

Introduction .....................................................................................................i

Research and Development:

Employment .................................................................................................... 1

Health and Function ........................................................................................ 2

Technology for Access and Function ............................................................. 3

Participation and Community Living ............................................................... 4

Disability Demographics ................................................................................. 5

Knowledge Translation

Knowledge Translation.................................................................................... 6

ADA Technical Assistance .............................................................................. 7

Capacity Building

Capacity Building for Rehabilitation Research Training ..............................8

Indices

Subject ...........................................................................................................A

Grantees ......................................................................................................... B

Project by State ............................................................................................. C

Principal Investigators ...................................................................................D

Projects by Program Type ............................................................................ E

Introduction 1

Introduction

The mission of NIDRR is to generate new knowledge and promote its effective use to improve the

abilities of people with disabilities to perform activities of their choice in the community, and also to

expand society’s capacity to provide full opportunities and accommodations for its citizens with

disabilities. NIDRR conducts comprehensive and coordinated programs of research and related activities to assist in the achievement of the full inclusion, social integration, employment, and independent

living of people with disabilities. This edition of the NIDRR Program Directory lists all projects

funded by NIDRR during the 2007 fiscal year.

The contextual paradigm of disability and rehabilitation research, originally described in NIDRR’s Long

Range Plan, 1999-2003, continues to frame the NIDRR research agenda. This paradigm overcomes the

limitations imposed by a medical model of disability. This paradigm of disability maintains that “disability is a

product of the interaction between characteristics of the individual (e.g., conditions or impairments, functional status, or personal and social qualities) and the characteristics of the natural, built, cultural, and social

environments.” (NIDRR Long-Range Plan 1999-2003.)

NIDRR’s Research Program

Under the Long Range Plan 2005-2009, NIDRR-funded research activities fall within three strategic

arenas: Research and Development, Capacity Building, and Knowledge Translation. Most NIDRR

grantees are universities or organizations of rehabilitation or related services. NIDRR’s largest funding

programs are the Rehabilitation Research and Training Centers (RRTCs), the Model Systems, and

Rehabilitation Engineering Research Centers (RERCs). NIDRR also makes awards through other

program mechanisms, including ADA Technical Assistance Projects, Advanced Rehabilitation Research Training Projects, Disability and Rehabilitation Research Projects, Mary E. Switzer Research

Fellowships, NIDRR Contracts, NIDRR Scholars, and Small Business Innovative Research. Program

descriptions are provided below.

ADA Technical Assistance Projects

NIDRR funds a network of Disability and Business Technical Assistance Centers (DBTACs) to

provide information, training, and technical assistance related to the American with Disability Act

(ADA) to businesses, agencies, and the public. Presently, ten regional DBTACs and one Coordination,

Outreach, and Research Center (CORC) are funded under this program.

Advanced Rehabilitation Research Training Projects

The Advanced Rehabilitation Research Training (ARRT) Program provides research training and

experience at an advanced level to individuals with doctorates, or similar advanced degrees, who have

clinical or other relevant experience. ARRT projects train rehabilitation researchers, including researchers with disabilities, with particular attention to research areas that support the implementation and

objectives of the Rehabilitation Act of 1973, as amended (Act), and that improve the effectiveness of

services authorized under the Act.
2 Introduction

Grants are made to institutions to recruit qualified persons, and to provide a training program that

includes didactic and classroom instruction, is multidisciplinary, emphasizes scientific research methodology, and may involve collaboration among institutions

Disability and Rehabilitation Research Projects

The Disability and Rehabilitation Research Projects (DRRP) program funds projects with special

emphasis on research, demonstration, training, dissemination, utilization, and technical assistance.

Projects may include combinations of these activities. True to the mission of NIDRR, these projects

may develop methods, procedures, and rehabilitation technology to assist in achieving the full inclusion and integration into society, employment, independent living, family support, and economic and

social self-sufficiency of individuals with disabilities, especially individuals with the most significant

disabilities, or to improve the effectiveness of services authorized under the Rehabilitation Act.

Mary E. Switzer Research Fellowships

Research Fellowships, named for the late Mary E. Switzer, give individual researchers the opportunity

to develop new ideas and gain research experience. There are two levels of fellowships: Distinguished

Fellowships and Merit Fellowships. Distinguished Fellowships go to individuals who have seven or

more years of research experience in subject areas, methods, or techniques relevant to rehabilitation

research and must have a doctorate, other terminal degree, or comparable academic qualifications.

Merit Fellowships are given to individuals who have either advanced professional training or independent study experience in an area that is directly pertinent to disability and rehabilitation but who do not

meet the qualifications for Distinguished, usually because they are in earlier stages of their careers.

Fellows work for one year on an independent research project of their design.

Model Systems

NIDRR administers programs that have become world-renowned model systems of care for persons

with spinal cord injuries, burns, and traumatic brain injuries. The Model Systems establish innovative

projects for the delivery, demonstration, and evaluation of comprehensive medical, vocational, and

other rehabilitation services. The work of the Model Systems begins at the point of injury and ends

with successful re-entry into full community life. These projects collect and contribute data on patient

characteristics, diagnoses, causes of injury, interventions, outcomes, and costs to a uniform national

database; participate in collaborative research with other Model System centers; and coordinate research efforts with other related grant recipients. In 2006, NIDRR funded a coordinating knowledge

translation center for all three Model System types.

NIDRR Scholars

The NIDRR Scholars Program is designed to provide internship opportunities in disability and rehabilitation research for undergraduate students with disabilities. Each year, NIDRR provides funding for

this program to projects and centers. The intent of the program is to enable students to gain practical

experience in ongoing research, thereby preparing them for careers in disability and rehabilitation

research. The duration of the internship is one semester and the students are required to work 20 hours

per week.
Introduction 3

NIDRR Contracts

Through its contracts, NIDRR seeks improved methods, systems, products, and practices to add to its

work. The contracts are for specific activities related to management, research, and information dissemination.

Rehabilitation Engineering Research Centers

Rehabilitation Engineering Research Centers (RERCs) conduct programs of advanced research of an

engineering or technical nature designed to apply advanced technology, scientific achievement, and

psychological and social knowledge to solve rehabilitation problems and remove environmental

barriers. Each center is affiliated with one or more institutions of higher education or nonprofit organizations. The RERCs’ work in a rehabilitation setting provides an environment for cooperative research

and the transfer of rehabilitation technologies into rehabilitation practice. Involved at both the individual and systems levels, RERCs seek to find and evaluate the newest technologies, products, and

methods that ultimately can benefit the independence of persons with disabilities and the universal

design of environments for all people of all ages. The centers also exchange technical and engineering

information worldwide and improve the distribution of technological devices and equipment to individuals who need them.

Rehabilitation Research and Training Centers

NIDRR’s Rehabilitation Research and Training Centers (RRTCs) conduct coordinated and integrated

advanced programs of research targeted toward the production of new knowledge, which may improve rehabilitation methodology and service delivery systems, alleviate or stabilize disabling conditions, or promote maximum social and economic independence for persons with disabilities. Operated

in collaboration with institutions of higher education or providers of rehabilitation or other appropriate

services, RRTCs serve as centers of national excellence in rehabilitation research. Also, they are

national or regional resources for research information for individuals with disabilities and the parents,

family members, guardians, advocates, or authorized representatives of the individuals. These centers

also conduct related training programs, including graduate, pre-service and in-service training. The

centers also disseminate and promote the utilization of research findings.

Small Business Innovation Research

Small Business Innovation Research (SBIR) grants help support the production of new assistive and rehabilitation technology. This two-phase program takes a product from development to market readiness.

NARIC and the NIDRR Program Directory

The Program Directory is compiled by the National Rehabilitation Information Center (NARIC). NARIC

functions as a specialized library, providing the public with information on and referral services to help

locate disability and rehabilitation research and services. Since 1977, NARIC has been the primary

source of rehabilitation and disability information generated by NIDRR funds, with special priority

services to NIDRR staff and NIDRR-funded project staff.
4 Introduction

NARIC also produces REHABDATA, an index of disability and rehabilitation literature produced by

NIDRR grantees as well as commercial publishers. Grantees submit copies of NIDRR-supported

research products to NARIC and they are added to the reference collection and REHABDATA database. Information about holdings is available online at http://www.naric.com.

Neither NARIC nor NIDRR assumes liability for the Directory’s contents or the use thereof. NARIC

does not evaluate or certify the programs or products of the organizations listed in the Directory.

This Directory is not intended for use as a fiscal document to show how NIDRR funds are allocated;

its purpose is to display the range of programs that NIDRR supports. This listing is current as of November

15, 2008. This directory may include projects that have passed the indicated extension date.

NARIC operates under U.S. Department of Education contract ED-08-CO-0095.
Contents

Rehabilitation Research and Training Centers (RRTCs) ............................................. 3

Disability and Rehabilitation Research Projects ......................................................... 10

Field Initiated Projects (FIPs) ..................................................................................... 16

Employment

NIDRR’s employment research focuses on the lifelong challenges to and

opportunities presented by transitions in employment experienced by people with

disabilities. Employment research addresses methods to integrate the unique needs of

employers and disability populations to improve employment outcomes across the

life span. NIDRR’s research agenda in the area of employment is designed to

strengthen the scientific basis of disability and rehabilitation-related research and

practice by increasing the availability of validated theories, measures and methods to:

(1) improve measurement, data sources, and estimates; and (2) enhance

identification, evaluation, and prediction of the factors that facilitate successful labor

force participation and work-related transitions across the life span. This research

agenda is also designed to strengthen the scientific basis of disability-related

employment policy, practice, and research by providing valid and reliable

information and analyses designed to: (1) improve understanding of employment

trends; individual labor force participation; and school-to-work transitions; and (2)

enhance knowledge of the broader societal developments that affect employment

opportunities and outcomes across the life span.

NIDRR Program Directory FY 2008 - Employment Outcomes 1-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center for Vocational

Rehabilitation Research

University of Massachusetts Boston

Institute for Community Inclusion

100 Morrissey Boulevard

Boston, MA 02125

john.halliday@umb.edu

www.communityinclusion.org/project.php?project_id=50

Principal Investigator: John Halliday

Public Contact: 617/287-4336

Project Number: H133B070001

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 07 $649,999; FY 08 $649,999

Abstract: The RRTC for Vocational Rehabilitation Research provides a comprehensive description of

the vocational rehabilitation (VR) program, collects best practices, and addresses the need for information that will assist administrators, researchers, and advocates to make data driven policy and practice

decisions. The RRTC (1) conducts an exhaustive, systematic research literature search in Year 1,

modeled after the Campbell Collaboration reviews, to provide a comprehensive platform for future

research activities of the RRTC and for other researchers and policy-makers; (2) collects descriptive

data from a wide range of sources including existing administrative datasets and official documents,

and launches the RRTC survey of state agencies for vocational rehabilitation, mental retardation/

developmental disability, mental health, and welfare, and community rehabilitation providers in Years 2

and 3 to develop state-by-state profiles of employment services and the context of VR service delivery;

(3) interviews VR directors of all 80 VR agencies in Years 2 and 3 to collect descriptive information

about key characteristics related to operational and programmatic decisions, policies, and practices; (4)

uses the Delphi Method in Years 3 through 5 to identify, evaluate, and describe best practices in the

implementation of (a) Order of Selection policies and the prioritization of individuals with the most

significant disabilities for VR services, (b) employment services for individuals with developmental

disabilities, and (c) employment services for individuals with mental illnesses; (5) institutes a training

and technical assistance agenda that uses Communities of Practice mechanisms to create interactive

participant-driven opportunities for translation, information sharing, and policy development; and (6)

widely disseminates products, curricula, and knowledge throughout the vocational rehabilitation

system, employment services system, and to a wide array of disability and advocacy organizations.

The RRTC develops a knowledgebase on VR that informs policy and practice at the federal, state, and

local levels, encourages data-based decision-making, results in the development of a research base that

future investigators can use for analyzing the consequences and outcomes of variations in State VR

agencies’ internal arrangements and operations, documents best practices in detail, identifies their key

features, and investigates their transferability into other contexts. The RRTC is a partnership of the

Institute for Community Inclusion at the University of Massachusetts Boston, the Center for the Study

and Advancement of Disability Policy, and InfoUse, a woman-owned business.
1-4 NIDRR Program Directory FY 2008 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Montana

Rehabilitation Research and Training Center on Disability in Rural

Communities

University of Montana

The University of Montana Rural Institute:

A Center for Excellence in Disability Research, Education, and Services

52 Corbin Hall

Missoula, MT 59812-7056

rural@ruralinstitute.umt.edu

rtc.ruralinstitute.umt.edu

Principal Investigator: Tom Seekins, PhD 406/243-2654

Public Contact: Diana Spas 888/268-2743 (V); 406/243-5467 (V); 406/243-4200 (TTY); Fax: 406/

243-2349

Project Number: H133B030501

Start Date: December 01, 2002

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $600,000; FY 04 $600,000; FY 05 $600,000; FY 06 $600,000; FY 07

$600,000; FY 08 (No-cost extension through 11/30/2008)

Abstract: The research conducted by this project improves the employment status of people with

disabilities in the rural US, enhances their ability to live independently, and advances the science of

rural disability studies. Four core areas comprise 11 research projects in rural employment and economic development, rural health and disability, rural community transportation and independent living,

and rural policy foundations. Projects include: (1) develop scientific methods to measure how rural

environments influence an individual’s community participation; (2) collaborate with very small rural

businesses to employ people with disabilities; (3) improve rural transportation options; and (4) create

programs to prevent or improve secondary conditions. Other projects explore ways for new partners,

including faith-based organizations, to be involved in improving rural services. A training program

disseminates research findings, trains students, and sparks the creative engagement of policymakers

and social advocates. The innovative STATE (Same-Time Availability to Everyone) policy requires

that the project provide standard print publications to the general public only when at least two alternative formats are also available to individuals with disabilities.
NIDRR Program Directory FY 2008 - Employment Outcomes 1-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Montana

Rehabilitation Research and Training Center on Disability in Rural

Communities

University of Montana

The University of Montana Rural Institute:

A Center for Excellence in Disability Research, Education, and Services

52 Corbin Hall

Missoula, MT 59812-7056

rural@ruralinstitute.umt.edu

rtc.ruralinstitute.umt.edu

Principal Investigator: Tom Seekins, PhD 406/243-2654

Public Contact: Diana Spas 888/268-2743 (V); 406/243-5467 (V); 406/243-4200 (TTY); Fax: 406/

243-2349

Project Number: H133B080023

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 08 $850,000

Abstract: The RTC: Rural at The University of Montana conducts research that advances the science

of rural disability and rehabilitation, improves the health of rural Americans with disabilities, and

increases their opportunities for employment and community integration. The research program: (1)

conducts detailed statistical analyses of state Vocational Rehabilitation (VR) data to identify promising,

evidence-based rural service practices; (2) develops and evaluates telecommunications protocol for

providing rural VR services; (3) conducts a longitudinal study to determine why rural VR clients might

exit services prematurely, and to evaluate retention strategies; (4) evaluates rural health promotion

strategies that could lead to improved employment outcomes; (5) conducts a randomized controlled

trial to evaluate ways to improve rural consumers’ use of health care services; (6) conducts a randomized controlled trial to evaluate a mental health peer support model for rural individuals with mobility

or sensory impairments; and (7) identifies strategies to improve rural transportation. The RRTC’s

knowledge translation program disseminates research findings and encourages the use of evidencebased rural practices by policy makers, advocates, service providers, and persons with disabilities. The

Center’s web site is a central component of this dissemination program and includes the first rural

disability “wiki” to build a rural disability knowledgebase. The Center also conducts three focused

training initiatives: (1) promoting economic development in rural southwest Texas; (2) facilitating

linkages between Utah Small Business Development Centers and VR services; and (3) implementing

the Living Well with a Disability health promotion program in rural South Carolina. Finally, the Center

uses web technology to conduct an innovative state-of- the-science conference on rural disability and

rehabilitation.
1-6 NIDRR Program Directory FY 2008 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs) 1 Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Employment Policy

and Individuals with Disabilities

Cornell University

Employment and Disability Institute

ILR School

201 ILR Extension Building

Ithaca, NY 14853-3901

smb23@cornell.edu

www.ilr.cornell.edu/edi/p-eprrtc.cfm

Principal Investigator: Susanne Bruyère, PhD; Richard Burkhauser, PhD; David Stapleton, PhD

Public Contact: Susanne Bruyère, PhD 607/255-9536 (V); 607/255-2891 (TTY); Fax: 607/255-2763

Project Number: H133B040013

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 04 $700,000; FY 05 $700,000; FY 06 $700,000; FY 07 $700,000; FY 08

$700,000

Abstract: The ultimate goal of the Employment Policy Rehabilitation Research and Training Center

(EP-RRTC) is to increase the employment and economic self- sufficiency of people with disabilities

and improve the quality of their lives. EP-RRTC’s immediate purpose is to contribute to the success of

the transition from caretaker policies to economic self-sufficiency policies. The immediate target

population consists of people who influence disability policy: people with disabilities; federal, state,

and local policymakers, administrators, and regulators; advocates; service providers; researchers and

policy analysts; the media; employers, unions, insurers; and the general public. The ultimate target

population is people with disabilities. Specific goals and objectives are: completion of new research

activities that will generate knowledge about the effects of past disability policy and other factors on

economic self-sufficiency, the impact of current and future initiatives designed to promote economic

self- sufficiency, and/or the likely success of new policy options; completion of 20 publishable papers

and companion policy briefs; training of consumers via 12 or more Washington- based Disability

Policy Forums; training of 5 graduate students; participation in the 2008 conference of the Interagency

Subcommittee on Employment; organization and delivery of disability policy research sessions at the

Association of Public Policy Analysis and Management (APPAM) fall meetings, and technical assistance to consumers on policy research and evaluation methods and data. Project activities include

writing briefs about the evaluations of promising policy innovations, consulting with a wide array of

constituents to obtain feedback about an array of policy options that merit further consideration, and

collaborating with SSA staff to develop state-level series on employment outcomes for Social Security

Disability Insurance and Supplemental Security Income beneficiaries. Dissemination activities include:

organization and participation in five disability policy research sessions at the 2007 fall conference of

the APPAM and a reception for disability researchers; presentations in the 2008 Interagency Subcommittee on Employment conference on interagency employment research; an accessible website for the

dissemination of our outputs (e.g., policy briefs, reports, and materials); presentations and dissemination of outputs at conferences; and publication of the research papers in peer-reviewed journals.
NIDRR Program Directory FY 2008 - Employment Outcomes 1-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Employment Service

Systems

Hunter College of CUNY

Research Foundation of CUNY

695 Park Avenue

New York, NY 10021

joneill@hunter.cuny.edu

www.essrtc.org

Principal Investigator: John O’Neill, PhD

Public Contact: 212/772-5188; Fax: 212/650-3198

Project Number: H133B040014

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 04 $699,981; FY 05 $699,973; FY 06 $699,990; FY 07 $849,982; FY 08

$699,975

Abstract: This Employment Service Systems Research and Training Center develops, enhances, and

utilizes partnerships to improve the quality of employment services, opportunities, and outcomes for

people with disabilities. Five research projects have been designed to meet this goal and examine

partnerships across public agencies, between not-for-profit and public agencies, and between rehabilitation agencies and businesses. The Consortia for Employment Success (CES) creates and evaluates

fully integrated disability service provider networks in three local communities. The CES increases

access for people with disabilities to both effective, comprehensive placement services, and a wellmanaged and centralized employer network that will increase employment and career advancement

opportunities for persons with disabilities. The Workplace Socialization Model (WPS) supplements the

CES Model by focusing on job enhancement and retention. The WPS aims to extend the job tenure of

employees with disabilities and other positive work outcomes including the employee’s job satisfaction, organizational commitment, and level of work culture competency, as well as the employer’s

satisfaction with the employee’s job performance. Identification of “Good Practices” within Vocational

Rehabilitation (VR) is designed to identify a variety of good practices currently being used in the StateFederal VR system across the US that facilitate consumer access to services and enhance employment

outcomes. Designing and Testing Comprehensive Employment Practice and Policy Initiatives within a

Vocational Rehabilitation State Agency develops and tests a model that leads to enhanced employment

outcomes. The model includes the “human capital” characteristics of persons with disabilities as well

as what VR delivery systems add to these human capital factors to improve outcomes. A study of

collaboration between Workforce Investment Act (WIA) partners in One-Stops collects data within 16

Iowa regions and correlates different levels of collaboration with customer satisfaction and employment outcomes.
1-8 NIDRR Program Directory FY 2008 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Ohio

Rehabilitation Research and Training Center on Substance Abuse,

Disability, and Employment

Wright State University

School of Medicine

Substance Abuse Resources and Disability Issues (SARDI)

3171 Research Boulevard, Room 255

Kettering, OH 45420

mary.mcaweeney@wright.edu

www.med.wright.edu/citar/sardi/rrtc_about.html

Principal Investigator: Dennis C. Moore, EdD

Public Contact: Mary McAweeney 937/775-1484 (V/TTY); Fax: 937/775-1495

Project Number: H133B040012

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 04 $699,998; FY 05 $699,983; FY 06 $699,981; FY 07 $699,984; FY 08

$699,989

Abstract: This RRTC builds on previous findings to positively impact persons with disabilities who

also experience substance use disorders, as well as the service providers upon whom they depend. The

highly integrated program of research addresses the following goals and objectives: (1) Promote

widespread use of substance use disorder screening among persons with disabilities who utilize disability-related employment services. This is accomplished by developing and validating a new substance

abuse screener called the “SASSI-VR”. Following two stages of development and validation, the

SASSI-VR is evaluated in three vocational rehabilitation (VR) programs on a statewide basis. (2)

Conduct a randomized clinical trial of a model of supported employment, Individualized Placement

and Support (IPS), to test its efficacy among persons with traumatic brain injury or other severe disabilities that also have a substance use disorder. The two trial sites are affiliated with rehabilitation

programs in the Wright State and Ohio State medical schools. Utilization of the IPS model with the

study populations holds tremendous potential for impacting services delivery for consumers who

experience very low rates of employment. (3) Research policy and practices relative to their impact on

VR services for persons with a disability and coexisting substance abuse. Serving as a critical complement to the first project, the roles of policies, statutes, guidelines, and VR service delivery practices

will be investigated within the larger community of public agencies. (4) Investigate factors that specifically contribute to unsuccessful case closure among consumers of VR services. This component

studies recent unsuccessful closures and their VR counselors, and the study has particular sensitivity to

the role of “hidden” substance abuse among unsuccessful closures.
NIDRR Program Directory FY 2008 - Employment Outcomes 1-9

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Virginia

Rehabilitation Research and Training Center on Workplace Supports

and Job Retention

Virginia Commonwealth University

1314 West Main Street, Box 842011

Richmond, VA 23284-2011

vbrooke@vcu.edu

www.worksupport.com

Principal Investigator: Paul Wehman, PhD

Public Contact: Valerie Brooke, Director of Training 804/828-1851 (V); 804/828- 2494 (TTY); Fax:

804/828-2193

Project Number: H133B040011

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 04 $699,981; FY 05 $699,973; FY 06 $699,990; FY 07 $699,988; FY 08

$699,999

Abstract: The purpose of the RRTC on Workplace Supports and Job Retention is to study those

supports which are most effective in the workplace for assisting persons with disabilities to maintain

employment and advance their careers. Research includes two long-term prospective randomized

experimental control research projects: (1) determining the efficacy of public/private partnerships, and

(2) determining the efficacy of business mentoring and career based interventions with college students

with disabilities. The RRTC is partnered with Manpower, Inc., several community rehabilitation

programs, and the VCU Business Roundtable. Additional projects look at disability management

practices, extended employment supports, job discrimination in employment retention, benefits planning and assistance, and workplace supports. These studies are done in conjunction with Equal Employment Opportunity Commission, the Society of Human Resource Professionals, and the U.S.

Chamber of Commerce.
1-10 NIDRR Program Directory FY 2008 - Employment Outcomes

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Arkansas

Improve the Employment Outcomes for the Low Functioning Deaf

(LFD) Population

University of Arkansas

College of Education and Health Professions

26 Corporate Hill Drive

Little Rock, AR 72205

dwatson@uark.edu

Principal Investigator: Douglas Watson, PhD

Public Contact: 501/686-9691; Fax: 501/686-9698

Project Number: H133A060044

Start Date: January 01, 2007

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $450,000; FY 07 $450,000; FY 08 $450,000

Abstract: This project conducts a program of theory-driven research to improve employment outcomes for the Low Functioning Deaf (LFD) population. The goals of the project are to: (1) develop a

national profile of the state of the knowledge for services to persons who are LFD; (2) develop consensus on functional definitions of the target population using a concept mapping approach with knowledgeable providers who serve the population; (3) develop and validate a psychometrically sound tool

to assess the functional characteristics of persons identified as LFD and to be used by partner states to

develop a descriptive profile of the population; (4) replicate a systems level analysis of service delivery

options available to the target population with key state partners; (5) assess barriers exhibited by LFD

and pre-employment skills needed to enter the workforce; and (6) focus on best practices in job coaching to enhance workplace integration and job tenure. The success of the research and dissemination

efforts is insured by inclusion of five state rehabilitation partners including providers, policy makers,

and administrators from vocational rehabilitation, community service agencies, and school and community-based transition programs. The project makes use of long-established networks and collaboration

with key federally-funded partners to facilitate dissemination of research-based knowledge to the field,

leading to improvements in services for persons who are LFD.
NIDRR Program Directory FY 2008 - Employment Outcomes 1-11

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Mississippi

Vocational Rehabilitation: Transition Services that Lead to Competitive

Employment Outcomes for Transition-Age Individuals with Blindness

or Other Visual Impairments

Mississippi State University

P.O. Box 6189

Mississippi State, MS 39762

lgoleman@colled.msstate.edu

www.blind.msstate.edu

Principal Investigator: Brenda Cavenaugh 662/325-3728

Public Contact: Lynda Goleman 662/325-2001 (V); 662/325-8693 (TTY); Fax: 662/325-8989

Project Number: H133A070001

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 07 $450,000; FY 08 $450,000

Abstract: This project conducts scientifically based research on transition services that lead to competitive employment outcomes for transition-age individuals with blindness or other visual impairments. The project includes four major research projects and a plan of dissemination. Project 1 involves conducting an integrative (systematic) literature review to identify and synthesize research on

services leading to successful employment and other postsecondary outcomes for blind youth. The

review process is considered empirical research and is approached with the scientific rigor used when

conducting primary research. Project 2 includes analysis of five national, cross-sectional, and longitudinal data sources to explore relationships between potential causes or influencing factors and positive

transition outcomes of youth who are blind or visually impaired. Specialized approaches used in

analysis of the longitudinal data sources allow opportunity for causal inferences. Project 3 uses qualitative and quantitative methods in the collection of data from a variety of sources (focus groups with

rehabilitation professionals, teachers, post-secondary support service providers, SSA representatives,

and others; interviews with consumers; VR case records). The research identifies factors that impact

the employment status of transition-age youth. Project 4 involves using knowledge gained from

Projects 1, 2, and 3 to identify and develop, demonstrate, and evaluate the effectiveness of two interventions—one targeting youth who are preparing to transition from high school to employment or

college and the other targeting youth who are preparing to transition from college to employment. In

implementing the plan of dissemination, a variety of methods help ensure that the quality, clarity, and

accessibility of products are appropriate for the target population.
1-12 NIDRR Program Directory FY 2008 - Employment Outcomes

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

I.T. Works

Syracuse University

900 South Crouse Avenue

Crouse-Hinds Hall, Suite 300

Syracuse, NY 13224-2130

pblanck@syr.edu

disability.law.uiowa.edu

Principal Investigator: Peter D. Blanck, PhD, JD 319/335-9043

Public Contact: Michael Morris, JD; James Schmeling, JD 315/443-9703 (Blanck); 202/521-2930

(Morris); 319/335-8459 (Schmeling)

Project Number: H133A050031

Start Date: December 31, 2005

Length: 12 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $299,901; FY 06 (No-cost extension through 12/31/2007); FY 07 (No-cost

extension through 12/31/2008)

Abstract: The goal of the I.T. Works project is to identify barriers to and facilitators of the hiring,

retention, advancement, and wages of individuals with disabilities. Research shows that the percentage

of working-age individuals with disabilities in full- or part-time positions is substantially lower than the

percentage of working-age people without a disability, and there is a demand for trained IT workers.

Increasing the employment of individuals with disabilities in IT-related jobs would increase the employment of individuals with disabilities overall and reduce the shortage for trained IT workers. Research activities for this project include a theoretical model in which predictive measures include

environmental factors, organizational factors, attitudinal factors, and individual characteristics. Outcome measures in the model include hiring rate, advancement rate, retention rate, and wages of individuals with disabilities. Training activities allow for the distribution of the research findings to diverse

target audiences, including employers, IT trainers and professionals, persons with disabilities in diverse

employment settings, other researchers, and relevant policy- makers. Target audiences also include IT

employers, IT training certification bodies, human resource managers, community colleges and university continuing education programs, and Centers for Independent Living and other disability-related

organizations.
NIDRR Program Directory FY 2008 - Employment Outcomes 1-13

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Demand-Side Employment Placement Models

Syracuse University

Burton Blatt Institute

900 South Crouse Avenue

Crouse-Hinds Hall, Suite 300

Syracuse, NY 13244

wmyhill@syr.edu

bbi-empdemand.syr.edu/

Principal Investigator: Peter D. Blanck, PhD, JD 315/443-9703

Public Contact: Wiliam N. Myhill, MEd, JD 315/443-1367; Fax: 315/443-9725

Project Number: H133A060033

Start Date: July 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $500,000; FY 07 $500,000; FY 08 $500,000

Abstract: Americans with disabilities have significantly lower levels of employment than their peers

without disabilities. Prior study of employment rates among people with disabilities generally has relied

on a “supply-side” approach, analyzing how personal characteristics predict employment and earnings.

These models have not sufficiently analyzed variables related to employer demand (and the interaction

of employer demand/supply and the environment) as predictors of employment outcomes for people

with disabilities. Thus, there is a need to systematically understand demand characteristics for qualified

workers with disabilities, particularly as work requirements change over time. This project sets out

scientifically rigorous and evidence-based methods to develop, identify, and evaluate employment

demand-side models. It translates the findings into valid and practical tools for large and small businesses in different market sectors to improve employment outcomes. It evaluates the relative efficacy of

these tools alongside supply-side research outcomes. The project is a nationwide collaboration of

economists, statisticians, and leading experts in law, public and disability policy, corporate culture,

applied life studies, technology, and education, as applied to disability employment policy and law.

Project leadership includes disability scholars from universities around the country, with combined

decades of research, training, and knowledge dissemination experience. The project builds fresh

partnerships among disability policy and law experts, the business community, researchers, and national disability organizations such as the National Organization on Disability and the National Council

on Independent Living. The project generates new knowledge to better understand market-driven

workforce trends in large and small firms and different market sectors, and to inform employment

practices to prepare individuals with disabilities for the present and future workforce. The project has a

systematic plan and logic model for knowledge translation and dissemination aimed at providing

employers best practice and practical tools to improve employment outcomes of people with disabilities.
1-14 NIDRR Program Directory FY 2008 - Employment Outcomes

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

SEDL’s Vocational Rehabilitation Service Models for Individuals with

Autism Spectrum Disorders

SEDL

4700 Mueller Boulevard

Austin, TX 78723

john.westbrook@sedl.org

www.sedl.org

Principal Investigator: John Westbrook, PhD

Public Contact: 512/476-6861; Fax: 512/476-2286

Project Number: H133A080007

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 08 $350,000

Abstract: For this project, SEDL partners with the Center for Autism and Related Disabilities at the

University of Central Florida (UCF CARD) to create a knowledge translation initiative to address the

growing need for improvement in vocational rehabilitation (VR) and transition services for persons

with autism spectrum disorders (ASDs). SEDL and UCF CARD conduct a multifaceted set of research activities to identify and document VR and transitional behavior management practices that are

linked to employment successes for people with ASDs, to identify factors that are strongly predictive

of such success, to study the activities and impact of a statewide VR service provider network, and to

document examples of success among individuals with ASDs in long-term employment placements.

Research activities include conducting two major systematic reviews, implementation of a rigorous

process for identifying and validating VR best practices, a study of the university-based statewide

network of CARD centers in Florida, and case studies of individuals with ASDs and their families.

Additionally, this project develops and disseminates an array of information products to inform both

policy and practice, and to support implementation of best practices in VR settings throughout the US

with existing national VR, service provider, advocacy, and research networks. This project is guided

by a national advisory panel comprised of representatives from NIDRR-funded research initiatives

addressing ASDs, VR professionals, ASDs service providers, and people with ASDs and/or their

family members. The project outcomes include new knowledge and understanding, and allow for onthe-ground changes within the VR system, increasing employment among persons with ASDs.
NIDRR Program Directory FY 2008 - Employment Outcomes 1-15

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Virginia

Vocational Rehabilitation Service Models for Individuals with Autism

Spectrum Disorders (VCU ASC Career Links)

Virginia Commonwealth University

VCU ASD Career Links

P.O. Box 842011

Richmond, VA 23298

www.worksupport.com

Principal Investigator: Paul Wehman, PhD

Public Contact: 804/828-1852 (V); 804/828-2494 (TTY); Fax: 804/828-2521

Project Number: H133A080027

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 08 $350,000

Abstract: VCU ASD Career Links conducts evidence-based research on vocational rehabilitation

(VR) service models for individuals with autism spectrum disorders (ASDs). The project is based at

Virginia Commonwealth University (VCU) and is a collaborative initiative between VCU and the

Virginia Department of Rehabilitative Services (DRS). The scope of research covers four areas: (1) the

impact of intensive, community-based work experiences on the employment outcomes of youth with

ASDs; (2) the postsecondary school participation and ultimate employment of college students with

ASDs; (3) the impact of personal digital assistants (PDAs) on the employment outcomes of individuals

with ASDs; and (4) a longitudinal analysis of VR service delivery and employment outcomes among

DRS clients with ASDs. While the primary target population is persons with ASDs, there is an emphasis on youth and young adults who are unemployed, under-employed, or under-served in

postsecondary education. Additionally, this project targets persons from traditionally under-represented

populations with diverse racial and ethnic backgrounds. This project works collaboratively with four

local school districts in the Richmond area and the Faison School for Autism to enroll youth with

ASDs into the project. The project also works with colleges and universities throughout the Commonwealth of Virginia. Dissemination activities include web casts, fact sheets, evidence-based journal

articles, and a toolkit on how to enhance VR employment models for youth with ASDs.
1-16 NIDRR Program Directory FY 2008 - Employment Outcomes

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Hampshire

Cognitive Training and Supported Employment in Severe Mental

Illness

Dartmouth College

PRC, 105 Pleasant Street

Concord, NH 03301-3852

susan.r.mcgurk@dartmouth.edu

Principal Investigator: Susan McGurk, PhD

Public Contact: 603/271-5747; Fax: 603/271-5265

Project Number: H133G050230

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 05 $149,736; FY 06 $149,749; FY 07 $149,106; FY 08 (No-cost extension

through 11/30/2009)

Abstract: Impaired cognitive functioning is an important predictor of employment outcomes in persons with severe mental illness (SMI), and a common complaint in consumers participating in vocational rehabilitation, including those in supported employment. This project evaluates a new, pilot

tested and standardized intervention, the “Thinking Skills for Work”, a program designed to help

people with SMI succeed in supported employment programs, including both getting and keeping jobs.

The Thinking Skills for Work program is aimed at improving the cognitive functioning of persons with

SMI involved in supported employment, and is based on a heuristic model of the interactions between

cognition, symptoms, work performance, and vocational services. According to the model, enhanced

cognitive functions improve both work outcomes and the efficiency of vocational services (i.e., fewer

support services needed per hour of consumer work). The Thinking Skills for Work program is delivered by a specialist who educates consumers about cognitive functioning and work, involves them in a

three-month program of computerized cognitive skills training, and works in collaboration with the

consumer and supported employment specialist to identify appropriate jobs, practice newly acquired

cognitive skills in work-related settings, and develop compensatory strategies for managing persistent

cognitive impairments.
NIDRR Program Directory FY 2008 - Employment Outcomes 1-17

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Hampshire

Fifteen-year Course of Competitive Employment for People with Severe

Mental Illness

Dartmouth Medical School

Department of Psychiatry

2 Whipple Place, Suite 202

Lebanon, NH 03766

Principal Investigator: Robert E. Drake MD, PhD

Public Contact: 603/448-0263; Fax: 603/448-3976

Project Number: H133G050181

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 05 $149,796; FY 06 $149,832; FY 07 $149,431; FY 08 (No-cost extension

through 9/30/2009)

Abstract: Little is known about long-term employment among people with severe and persistent

psychiatric illnesses, such as schizophrenia or bipolar disorder, and vocational disabilities. Two small

pilot studies suggest that a large proportion of these individuals, when exposed to effective vocational

rehabilitation (VR) and supported employment services, do attain long-term jobs that are associated

with greater independence, economic self-sufficiency, and recovery, but a prospective, longitudinal

study is criticall ̈y needed to confirm and amplify these findings. To address this issue, this study: (1)

examines the longitudinal course of competitive employment (any competitive job) and long-term jobs

(competitive employment lasting greater than one year) among people with severe mental illnesses; (2)

details the impact of VR services, supported employment, and other services on long-term employment; and (3) examines the correlates of long-term employment, including independence, economic

self-sufficiency, quality of life, and other aspects of recovery. The key objectives are to build a timeline

of work, earned and other income, benefits, independent living, social functioning, symptom control,

and quality of life over 15 years for each individual on the basis of multiple data sources; to link VR

and other service records with employment outcomes by statistical means and by self-report; and to

link employment outcomes with other manifestations of recovery, again by statistical means and by

self-report. The project uses timeline methods, longitudinal data methods, and narrative self-reports to

conduct these analyses. The outcomes of the study are to show that individuals with the most severe

psychiatric disabilities are able to attain high rates of competitive employment and long-term employment, that VR and other services are critical to successful long-term employment, and that long-term

employment is associated with independence, economic improvements, quality of life, and recovery.

Health and Function

Maximizing health and function among people with disabilities is critical to the

achievement of NIDRR’s mission and the associated higher-order goals of

employment and community participation. Functional ability reflects the complex

interaction between individuals and the environments in which they live.

Accordingly, NIDRR conceptualizes and examines issues of health and function at

the individual and systems levels. Individual level research focuses on the

development and testing of new interventions that improve functional and health

outcomes for individuals. At the systems level, NIDRR-supported research focuses

on the organization, and delivery of health care and medical rehabilitation services.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Disability and Rehabilitation Research Projects .................................................................................. 15

Model Spinal Cord Injury Systems ..................................................................................................... 50

Field Initiated Projects (FIPs) .............................................................................................................. 64

NIDRR Program Directory FY 2008 - Health and Function 2-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center in Neuromuscular

Diseases (RRTC/NMD)

University of California, Davis

Department of Physical Medicine and Rehabilitation (TB191)

School of Medicine

One Shields Avenue

Davis, CA 95616

nmdinfo@ucdavis.edu

www.nmdinfo.net

Principal Investigator: Craig McDonald, MD

Public Contact: Sandy Walsh, Coordinator of Information Services 530/752-3447; Fax: 800/508-

9656

Project Number: H133B031118

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000; FY 06 $800,000; FY 07

$800,000; FY 08 (No-cost extension through 11/30/2009)

Abstract: The purpose of the Rehabilitation Research and Training Center in Neuromuscular Diseases

(RRTC/NMD) is to enhance the health, function, and quality of lives of persons with neuromuscular

diseases (NMD). The goals of this project are to: (1) develop a program for multicenter rehabilitation

research in NMD through the Cooperative International Neuromuscular Research Group (CINRG);

(2) conduct research that continues to address rehabilitation needs, particularly related to exercise,

nutrition, pain, secondary conditions, and the quality of life of individuals with neuromuscular diseases; (3) develop and evaluate new or emerging technologies and interventions that provide the

information needed to improve employment, community integration, and quality of life outcomes for

this population of individuals with disabilities; (4) develop and evaluate appropriate health promotion

and wellness programs that enhance the ability of individuals with neuromuscular disease to be physically active and participate in recreational activities; and (5) conduct a comprehensive program of

training, dissemination, utilization, and technical assistance activities that are well-anchored in the

research program and address the needs of stakeholders.
2-4 NIDRR Program Directory FY 2008 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center on Aging-Related

Changes in Impairment for Persons Living with Physical Disabilities

Los Amigos Research & Education Institute, Inc.

7601 East Imperial Highway

800 West Annex

Downey, CA 90242

lcarrothers@agingwithdisability.org

www.agingwithdisability.org

Principal Investigator: Bryan J. Kemp, PhD

Public Contact: LeeAnn Carrothers, PT, PhD, Training Director 562/401-7402; Fax: 562/401-7011

Project Number: H133B031002

Start Date: August 01, 2003

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $700,000; FY 04 $700,000; FY 05 $700,000; FY 06 $700,000; FY 07

$700,000; FY 08 (No-cost extension through 7/31/2009)

Abstract: This project is a combined effort of Rancho Los Amigos National Rehabilitation Center and

the University of California at Irvine, with other collaborators including the Center for Disability in the

Health Professions at Western University and two Rehabilitation Engineering Research Centers. This

project evolves from the fact that persons who have a disability are now living into middle age and late

life in ever-increasing numbers. However, many of these people appear to be experiencing premature

age-related changes in health and functioning. The project tests a model for improved understanding of

these problems and interventions to help alleviate them. Persons who are experiencing these kinds of

problems and their families are included in all center projects. The training, dissemination, and technical assistance activities include clinical training of current and future health providers, current and

future researchers, persons with disabilities, their families, and policy makers. Both traditional methods

of one-on-one and group training as well as technology-based distance training techniques are used to

reach national audiences and under-served populations.
NIDRR Program Directory FY 2008 - Health and Function 2-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Rehabilitation Research and Training Center on Spinal Cord Injury:

Promoting Health and Preventing Complications through Exercise

National Rehabilitation Hospital/MedStar Research Institute

Center for Health and Disability Research

102 Irving Street, NW

Washington, DC 20010

matthew.e.kehn@medstar.net

www.sci-health.org

Principal Investigator: Suzanne L. Groah, MD 202/877-1196

Public Contact: Matthew E. Kehn, Project Coordinator 202/877-1603; Fax: 202/726-7521

Project Number: H133B031114

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000; FY 06 $800,000; FY 07

$800,000; FY 08 (No-cost extension through 11/30/2009)

Abstract: This project systematically and comprehensively addresses the role and impact of physical

activity in the prevention of secondary conditions in people with spinal cord injury (SCI). Initially, the

project establishes critical, yet-undefined physiological responses to exercise in SCI and comprehensively examines cardiovascular disease risk in individuals with SCI applying accepted guidelines used

in the able-bodied population. The project develops exercise formats specifically designed according to

severity of SCI and chronicity of SCI to address the prevention of and knowledge regarding osteoporosis and other secondary conditions. In addition, the project determines whether regular exercise

is related to fewer secondary conditions. These research findings feed into four training activities that

include a peer mentoring program for newly injured people with SCI, a consumer-driven education

curriculum for physical therapy and medical students, a state-of-science and training conference, and

the development of a virtual resource network on exercise and prevention. The RRTC is a collaborative effort of clinical and disability researchers, SCI consumer organizations, and independent living

advocates. In addition to its offerings on www.sci-health.org, the RRTC maintains a Live Journal site

at rrtc-sci.livejournal.com. In addition to other webcast accessible through the Multimedia pages on the

sci-health.org website, the entire Fall 2006 State of the Science Conference is available on demand at

www.sci-health.org/SOS/SOS.php.
2-6 NIDRR Program Directory FY 2008 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Technology Promoting

Integration for Stroke Survivors: Overcoming Social Barriers

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611

ejr@northwestern.edu

www.rrtc-stroke.org/

Principal Investigator: Elliot J. Roth, MD 312/238-4637

Public Contact: Linda Lovell, Project Coordinator 312/238-6197; Fax: 312/238-6998

Project Number: H133B031127

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000; FY 06 $800,000; FY 07

$800,000; FY 08 (No-cost extension through 9/30/2009)

Abstract: This project develops and evaluates a sequence of robotic training and assistive devices that

are designed with the idea of promoting efficient function in the workplace or at home, and with the

further intent that they form a basis for the development of appropriate technologies to allow people

with disabilities ready access to existing facilities in the community. At each stage, the project engages

engineering students as a means to provide intensive effort for development of novel designs, but also

to provide valuable opportunities for training students in the themes related to recovery of function and

community integration of people with disabilities. Other projects at this center include: the use of

emotionally expressive and narrative writing to facilitate coping and adaptation after stroke; computerized training for conversational scripts that facilitate access to the community and work force; and a

consumer-directed, dynamic assessment methodology for evaluating community living and work

participation environments and technologies for use by people who have had a stroke. In addition to

these projects, the RRTC develops and evaluates a comprehensive plan for training directed to stroke

survivors and their families, students, researchers, clinicians, and service providers. These approaches

are implemented through a variety of mechanisms, including continuing education courses, web-based

presentations, and intensive training in our research facilities.
NIDRR Program Directory FY 2008 - Health and Function 2-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Enhancing the

Functional and Employment Outcomes of Individuals Who Experience

a Stroke

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611

ejr@northwestern.edu

www.rrtc-stroke.org/

Principal Investigator: Elliot J. Roth, MD 312/238-4637

Public Contact: Linda Lovell, Project Coordinator 312/238-6197; Fax: 312/238-6998

Project Number: H133B080031

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 08 $849,813; FY 09 $849,514

Abstract: As new and better stroke treatments have become available, the number of stroke survivors

living in the community has increased. Therefore, not only is there a need for further research on

promising new interventions that promote health and function, but also a growing need for interventions that can be delivered in home and community settings. This project studies rehabilitation interventions and assessments focused on improved mobility and secondary conditions that have been designed

with the intent of promoting efficient function in the workplace or at home. It also looks at the barriers

and facilitators for return-to-work from the perspective of stroke survivors who are seeking employment. The RRTC research projects include: (1) a study of the effectiveness of stretching as hand

therapy for sub-acute hemiparesis; (2) development of a low-cost, non-mechanized gait retraining

device; (3) testing a self-management approach to community living, participation, and employment;

(4) examining the barriers and enablers for return-to-work from the perspective of the of the individual

who experienced the stroke; and (5) development of a return-to-work vocational assessment using

virtual reality technology. For this project, the Rehabilitation Institute of Chicago has partnered with

Northwestern University, the University of Illinois at Chicago, Washington University at St. Louis,

Marquette University, and Archeworks, Inc, as well as the National Stroke Association and the National Aphasia Association.
2-8 NIDRR Program Directory FY 2008 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Missouri

Missouri Arthritis Rehabilitation Research and Training Center

(MARRTC)

University of Missouri/Columbia

Physical Medicine and Rehabilitation

One Hospital Drive, DC330.00

Columbia, MO 65212

holtmeyerk@health.missouri.edu

www.marrtc.org

Principal Investigator: Jerry C. Parker, PhD

Public Contact: Kim Holtmeyer 573/884-1499; Fax: 573/884-3020

Project Number: H133B031120

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000; FY 06 $800,000; FY 07

$800,000; FY 08 (No-cost extension through 9/30/2009)

Abstract: The purpose of the Missouri Arthritis Rehabilitation Research and Training Center

(MARRTC) is to provide leadership at the national level in support of three key objectives: to reduce

pain and disability, to improve physical fitness and quality of life, and to promote independent living

and community integration for persons with arthritis of all ages in the United States. State-of-thescience rehabilitation research addresses the needs of persons with arthritis in the following areas: (1)

home and community-based self-management programs, (2) benefits of exercise and physical fitness,

and (3) technologies available to the broad populations of persons with arthritis in the environments

where they live, learn, work, and play. The MARRTC conducts training and capacity-building programs for critical stakeholders within the arthritis disability arena, including consumers, family members, service providers, and policy makers. Additionally, the MARRTC provides technical assistance

for persons with arthritis and other stakeholders in order to promote utilization of arthritis-related,

disability research. The MARRTC also provides widespread dissemination of informational materials

to persons with disabilities, their representatives, service providers, and other target audiences (e.g.,

editors and reporters).
NIDRR Program Directory FY 2008 - Health and Function 2-9

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Traumatic Brain

Injury Interventions

Mount Sinai School of Medicine

Research and Training Center

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

www.tbicentral.org

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372 (V); 212/241-8978 (TTY); Fax: 212/348-5901

Project Number: H133B040033

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 04 $700,000; FY 05 $700,000; FY 06 $700,000; FY 07 $700,000; FY 08

$700,000

Abstract: The research program includes two randomized clinical trials (RCTs) and two projects

supportive of better everyday interventions and better research: Research Study 1 (R1) is an RCT of a

treatment for depression: cognitive behavioral therapy, adapted to address the unique cognitive and

behavioral challenges of people with TBI that often pose barriers to treating depression, a major factor

in reducing post-TBI quality of life, is compared to supportive therapy. In R2, a second RCT, a standard day treatment program is compared to a similar program (Executive Plus), augmented with

modules to improve executive functioning and attention training. R3, Support for Evidence-Based

Practice, evaluates all published research on post-TBI interventions and assessment of outcomes; it

serves as a national resource for disseminating the results. It also implements three participatory action

research-based analyses of high priority areas, including meta-analyses if appropriate. In addressing

improved outcome measurement, R4 focuses on the PART instrument, a measure of participation

currently being tested within eight TBI Model Systems. R4 focuses on creating a subjective approach

to serve as a complement to the PART’s current focus on objective assessment. A major focus of the

RRTC is placed on capacity building of clinical and research professionals to address the need for

better day-to-day interventions in the lives of people with TBI. Often their medical needs are misread,

their brain injury goes unidentified, and they find services and accommodations inappropriate. Capacity building focuses on students early in their educational career - to help shape career choice and

points of view; graduate and post-graduate students; and practicing “gate keepers” in the community,

primarily psychologists and physicians.
2-10 NIDRR Program Directory FY 2008 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center on Health and Wellness in

Long Term Disability

Oregon Health and Science University

Oregon Institute on Disability and Development

Child Development and Rehabilitation Center

707 Southwest Gaines

P.O. Box 574

Portland, OR 97207-0574

rrtc@ohsu.edu

www.healthwellness.org

Principal Investigator: Charles Drum, PhD 503/494-8364

Public Contact: Susan Wingenfeld 503/494-3533; Fax: 503/494-6868

Project Number: H133B040034

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 04 $700,000; FY 05 $700,000; FY 06 $700,000; FY 07 $700,000; FY 08

$700,000

Abstract: The vision of the RRTC is to contribute to the reduction of health disparities for person with

disabilities through an integrated program of research, training, technical assistance, and dissemination.

The Center has three inter-related strands of work to address its three intended outcomes/goals: (1)

identify strategies to overcome barriers that impede access to routine healthcare for individuals with

disabilities; (2) identify interventions in areas such as exercise, nutrition, pain management, or complementary and alternative therapies that promote health and wellness and minimize the occurrence of

secondary conditions for persons with disabilities; and (3) develop improved status measurement

tool(s) to assess health and well-being of individuals with disabilities regardless of functional ability. In

order to achieve these outcomes, the RRTC conducts a coordinated program of research and training

activities using a logic model framework. RRTC projects summarize and validate existing research

findings on barriers to health care access as well as rigorously test and compare new strategies to

overcoming identified barriers. The RRTC also examines and evaluates the practices of exemplary

generic and specialized health promotion programs for people with disabilities in order to create an

evidence-based set of evaluation and planning criteria. In addition, the RRTC organizes and uses

panels to assess current health status measurement tools and develops or refines measures to more

accurately reflect the health and well-being of people living with disabilities. Throughout these activities the RRTC disseminates informational materials and provide technical assistance to individuals with

disabilities, their representatives, providers, and other interested parties.
NIDRR Program Directory FY 2008 - Health and Function 2-11

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Washington

Multiple Sclerosis Rehabilitation Research and Training Center

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98185

msrrtc@u.washington.edu

www.msrrtc.washington.edu

Principal Investigator: George H. Kraft, MD 206/543-7272

Public Contact: 888/634-6778; 206/221-5302; Fax: 206/685-3244

Project Number: H133B031129

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000; FY 06 $800,000; FY 07

$800,000; FY 08 (No-cost extension through 9/30/2009)

Abstract: This center conducts rehabilitation research that: (1) Develops new interventions and

practices in the areas of disease suppression, strength enhancement, preserving employment, depression management, and pain control; (2) collects data from an extensive survey and explores complex

interactions among multiple variables, models factors that predict differing levels of participation by

people with multiple sclerosis (MS), and proposes points of intervention that modify changes in function; and (3) facilitates enhanced participation through training, technical assistance, and dissemination

through professional meetings, publications, and a State-of-the-Science conference. In addition, a webbased knowledgebase provides technical assistance to individuals with MS and healthcare providers

with respect to caregiver issues, financial and insurance planning, self-sufficiency and coping, and

assistive technology.
2-12 NIDRR Program Directory FY 2008 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Washington

Multiple Sclerosis Rehabilitation Research and Training Center

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98185

msrrtc@u.washington.edu

www.msrrtc.washington.edu

Principal Investigator: George H. Kraft, MD 206/543-7272

Public Contact: 888/634-6778; 206/221-5302; Fax: 206/685-3244

Project Number: H133B080025

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 08 $850,000

Abstract: This project conducts a comprehensive program of research on issues critical to individuals

living with multiple sclerosis (MS) in the areas of outcomes measurement, improved medical and

community interventions, and improved employment outcomes. The project includes three coordinated

core areas of research designed to enhance function and employment in individuals with MS. Program

I: The Outcomes Measurement core includes a longitudinal study of 400 people with MS of secondary

conditions such as pain, fatigue, depression, and cognitive impairment and outcomes such as participation including employment. This program uses modern psychometric techniques to evaluate measures

of these and other secondary conditions, develop cross-walking tables to allow comparison of scores

across measures, and compare levels of pain, fatigue, and depression in MS to norms of the general

population and other disability groups. Program II develops improved medical or community rehabilitation interventions by conducting a randomized controlled trial of individualized self-management

training delivered by telephone to reduce secondary conditions such as fatigue and pain with a generic

psychoeducational intervention for control. This program evaluates the impact on participation, including employment, in addition to evaluating reduction in interference from secondary conditions. Program III improves employment outcomes of persons with MS by examining the national RSA 911

database to identify process and outcome variables associated with successful vocational rehabilitation

(VR) closures. Qualitative interviews are conducted with federal state VR counselors to understand

their perspectives on VR services and MS. Longitudinal data on employment is analyzed to evaluate

changes in employment status over time. Researchers conduct follow-up surveys about impact of

accommodation services on employment with 200 recipients of services from MS Employment Assistance Service. The result is best practices and recommendations for improved employment services.
NIDRR Program Directory FY 2008 - Health and Function 2-13

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Washington

Rehabilitation Research and Training Center on Aging with a Physical

Disability: Reducing Secondary Conditions and Enhancing Health and

Participation, Including Employment

University of Washington

Department of Rehabilitation Medicine

1959 NE Pacific Street

BB-919 Box 356490

Seattle, WA 98195

Principal Investigator: Mark P. Jensen, PhD 206/543-3185

Public Contact: Fax: 206/685-3244

Project Number: H133B080024

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 08 $850,000

Abstract: The goal of this center is to foster a better understanding the challenges faced by those aging

with a physical disability. The project focuses on four populations of persons with disabilities: persons

with spinal cord injury (SCI), multiple sclerosis (MS), post-polio syndrome (PPS), and muscular

dystrophy (MD). The project: (1) enhances understanding of the natural course of aging with these

disabilities through a series of longitudinal surveys to examine the effects of aging in the development

of secondary conditions; (2) develops and evaluates measures of key outcome domains for use with

individuals aging with SCI, MS, PPS, and MD utilizing cross-population and cross-measure analyses

to evaluate the psychometric properties of instruments used in disability research, as well as to develop

better measures of depression, fatigue, participation, and pain; (3) tests the efficacy of two innovative

interventions that enhance the health and participation in these populations, using remote monitoring of

activity levels and a pilot intervention featuring remote prompting to enhance self-management of

activity patterns; (4) enhances understanding of the experiences of individuals aging with SCI, MS,

PPS, and MD in the workplace and with vocational rehabilitation and employment services through

secondary data analysis and qualitative interviews; and (5) disseminates the findings from the research

projects in an effective and efficient manner to individuals with disabilities, their family members, and

their health care providers.
2-14 NIDRR Program Directory FY 2008 - Health and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

California

Rehabilitation Engineering Research Center for Successful Aging with

Disability: Optimizing Participation Through Technology (OPTTRERC)

University of Southern California

Division of Biokinesiology and Physical Therapy

1540 Alcazar Street, CHP-155

Los Angeles, CA 90033

winstein@usc.edu

www.isi.edu/research/rerc

Principal Investigator: Carolee J. Winstein, PhD, PT (USC); Philip Requejo, PhD (Rancho Los

Amigos) 323/442-2903

Public Contact: Carolee J. Winstein, PhD, PT 323/442-2903; Fax: 323/442-1515

Project Number: H133E080024

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 08 $950,000

Abstract: The goal of this project is to enhance the lives of individuals aging with and into disability

through: (1) development and delivery of cutting-edge technologies for identification, evaluation, and

rehabilitation of motor processes that facilitate or impede functional performance, employment, and

community participation for the intended beneficiaries; (2) employment of state of the art data management, dissemination, and performance evaluation techniques to ensure that the knowledge and products emergent from the RERC are accessible for all intended beneficiaries; (3) assembly of a

multidisciplinary team of experts in clinical rehabilitation, engineering, and gerontology, along with a

select group of technology partners, and disability advocates to ensure that OPTT-RERC’s short- and

long-term outcome goals are successfully implemented; and (4) alignment of the clinical and technological strengths of several area programs into an integrated infrastructure to provide training opportunities for future rehabilitation researchers. The Dexterous Manipulation with the Fingertips Project

evaluates a clinically useful metric and rehabilitation strategy for dynamic multifinger dexterity (R1)

and, in collaboration with the second project area, develops a home-use gaming system to promote

retention and improvement of dexterous manipulation via immersion technologies (D1). The Virtual

Reality (VR) and Gaming for Home-Based Motor Assessment and Training Project develops low cost,

home-based VR toolkits (VRT) for motor assessment and rehabilitation (D2) and investigates the

efficacy of the VRT games for use in both the clinic setting and the home for individuals aging with

and into disability (R2). The Optimizing Mobility in the Home and Community for Manual Wheelchair Users Project identifies optimal transfer and lifting mechanics to preserve the shoulder complex

(R3) and uses VRT games for targeted and progressive shoulder exercise while sitting in a wheelchair

(D3). The Neuromuscular Electrical Stimulation (NMES) for Mobility uses implantable wireless

micro-stimulators to prevent recurrences of debilitating pressure ulcers in the middle

age and older individuals with disability (D4).
NIDRR Program Directory FY 2008 - Health and Function 2-15

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Alabama

University of Alabama at Birmingham (UAB) Traumatic Brain Injury

Model System (UAB TBIMS)

University of Alabama/Birmingham

Spain Rehabilitation Center

Physical Medicine and Rehabilitation

619 - 19th Street South, SRC529

Birmingham, AL 35249-7330

novack@uab.edu

www.uab.edu/tbi

Principal Investigator: Thomas A. Novack, PhD

Public Contact: Pamela K. Mott 205/934-3283

Project Number: H133A070039

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $434,398; FY 08 $434,399

Abstract: This project provides rehabilitation services specifically designed to meet the special needs

of individuals with traumatic brain injury (TBI) through a multidisciplinary, comprehensive model

system which spans the clinical continuum from emergency services through rehabilitation and community re-entry. The project includes one collaborative research module and one in-house research

project, aimed at improving the health and function, as well as the community participation of the

individuals with TBI. The collaborative research module involves examination of the risks and consequences of weight gain after TBI, which has never been explored in depth. The in-house research

project focuses on an in-home training program to improve visual perceptual speed that could impact

return to driving.
2-16 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Northern California Traumatic Brain Injury Model System of Care

Santa Clara Valley Medical Center (SCVMC)

Rehabilitation Research Center

751 South Bascom Avenue

San Jose, CA 95128

jerry.wright@hhs.sccgov.org

www.tbi-sci.org

Principal Investigator: Tamara Bushnik, PhD

Public Contact: 408/793-6433; Fax: 408/793-6434

Project Number: H133A070038

Start Date: October 07, 2007

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 07 $426,720; FY 08 $426,720

Abstract: This project conducts research with a focus on fatigue in individuals with traumatic brain

injury (TBI). Current studies have identified a strong association of fatigue with sleep disorders,

depression, pain, and cognitive challenges; the prevalence of pituitary dysfunction is high in this group

as well but the level of dysfunction is not proportional to levels of fatigue. This site specific research

effort is a prospective, randomized, single-blind crossover study that evaluates the impact of a graduated physical activity program on fatigue and related factors of depression, sleep quality/daytime

drowsiness, cognitive function, and general health measures.
NIDRR Program Directory FY 2008 - Health and Function 2-17

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

UCHSC Burn Model System Data Coordination Center (BMS/DCC)

University of Colorado Health Sciences Center

School of Medicine

Department of Preventive Medicine and Biometrics

4200 East Ninth Avenue, Box B119

Denver, CO 80262

erin.delong@uchsc.edu

bms-dcc.uchsc.edu

Principal Investigator: Dennis C. Lezotte, PhD 303/315-6873

Public Contact: Erin Delong, Project Coordinator 303/315-0320; Fax: 303/315-3183

Project Number: H133A070006

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 07 $300,000; FY 08 $300,000

Abstract: The Burn Model System Data Collection Center (BMS/DCC) provides scientific and

technical support to the Burn Model Systems’ mission, which is “to conduct research that contributes

to evidence-based rehabilitation and clinical interventions as well as develop practice guidelines that

improve the lives of individuals with burn injuries.” The BMS/DCC addresses four important areas in

rehabilitation research: project design and management, data management and quality, scientifically

appropriate analytical support, and broad dissemination for long-term impact. The data center strives to

provide quality support by developing integrated information systems, providing professional consultation, and designing and delivering dedicated training programs. The primary goal is to improve the

scientific rigor of clinical and rehabilitation research in the area of burn injury. Areas of specific concern include: collecting multi-site longitudinal outcomes data; coordinating multi-center research data;

providing analysis and oversight to achieve scientifically sound multi-center collaborative and sitespecific clinical and rehabilitative research; collaborating with other National Data and Statistical

Centers to exchange ideas and ensure the most efficient operations; publishing scientifically rigorous

articles; and coordinating other effective dissemination strategies. The BMS/DCC consists of two

functionally independent but related units, a data administration core and an analytical core. The data

administration core continues to support and manage the BMS Level 1 (National) Database while

implementing the necessary improvements to ensure quality and scientifically sound data for burn

research. In addition, the data administration core implements web-based data collection and research

support tools for collaborative modules and, as needed, assists in the conduct of the site-specific

research studies. The analytical core provides statistical support (analysis, consultation, study-design,

and study implementation) for projects that use either Level 1 data or data generated from collaborative

and site-specific research. 
2-18 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

Collaborative Spinal Cord Injury Model Systems Centers Program:

Improving Spinal Cord Injury Rehabilitation Outcomes

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

gale@craig-hospital.org

www.craighospital.org

Principal Investigator: Gale G. Whiteneck, PhD

Public Contact: 303/789-8204; Fax: 303/789-8441

Project Number: H133A060103

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 06 $2,200,000; FY 07 $900,000; FY 08 $900,000

Abstract: Inpatient rehabilitation for spinal cord injury (SCI), like all of rehabilitation, has been

studied largely as an undifferentiated black box. Research has examined the whole “rehabilitation

package” but has not addressed which specific therapy interventions, medical procedures, patient

education, counseling, or activities are effective when offered in various combinations or sequences,

for specific types of patients and impairments. To address this limitation, this project uses Clinical

Practice Improvement (CPI) research methodology to isolate specific components of rehabilitation

interventions, and to determine how, and to what degree, each component is associated with outcomes.

Specific aims are to: (1) identify individual patient characteristics, including demographic data, severity

of spinal cord injury, and severity of illness (complications and comorbidities), that explain significant

variation in the outcomes of acute rehabilitation for SCI; (2) identify specific medical/nursing procedures and therapy interventions, or combinations of procedures and interventions that are associated

with better outcomes, controlling for patient characteristics; and (3) determine whether specific impairment-by-treatment interactions are associated with better outcomes. This project is a collaborative

research partnership with five other prominent SCI rehabilitation facilities: Rehabilitation Institute of

Chicago, Shepherd Center, Mt. Sinai Medical Center, National Rehabilitation Hospital, and Carolinas

Rehabilitation. Also collaborating is the Institute for Clinical Outcomes Research at International

Severity Information Systems in Salt Lake City, Utah, which has extensive experience applying CPI

methodology, and MobileDataForce in Boise, Idaho, with expertise in handheld data capture technology.
NIDRR Program Directory FY 2008 - Health and Function 2-19

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

The National Data and Statistical Center for the Traumatic Brain

Injury Model Systems

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

charrison-felix@craighospital.org

www.tbindsc.org

Principal Investigator: Cynthia Harrison-Felix, PhD

Public Contact: 303/789-8565; Fax: 303/789-8441

Project Number: H133A060038

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 06 $625,000; FY 07 $625,000; FY 08 $625,000

Abstract: By implementing a comprehensive and innovative program of new data management

technologies and operating procedures that emulate the best practices of clinical research organizations

and data coordinating centers, the National Data and Statistical Center (NDSC) increases the rigor and

efficiency of scientific efforts to longitudinally assess the experience of individuals with traumatic brain

injury (TBI) and advances TBI rehabilitation. The TBIMS database and the NDSC introduce the

following innovations: a state-of-the-art, web-based data management system; a computer-assisted

interview system; a Standard Operating Procedures Manual; training through quarterly web-based

conferences, as well as more frequent in-person conferences; comprehensive Data Collector certification; annual data monitoring visits to each center; analysis of ethnic/racial bias in participant recruitment and retention and collaboration with the NIDRR-funded Center for Capacity Building on Minorities with Disabilities Research; providing more comprehensive methodological as well as statistical

consultation; continuation of the TBIMS survival study; a system for following participants from

defunded centers; and the use of common procedures, technologies, and training among all Model

System Data Centers. re:
2-20 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

The Rocky Mountain Regional Brain Injury System (RMRBIS)

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

charrison-felix@craighospital.org

www.craighospital.org/Research/TBIModelsystems.asp

Principal Investigator: Gale G. Whiteneck, PhD 303/789-8204

Public Contact: Cynthia Harrison-Felix, PhD 303/789-8565; Fax: 303/789-8441

Project Number: H133A070022

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 07 $426,720; FY 08 $426,720

Abstract: The Rocky Mountain Regional Brain Injury System (RMRBIS) conducts two site specific

research projects, participates in three collaborative research modules, contributes to the longitudinal

TBI National Database, and maintains a TBI Model System of care and research. Research Project R1:

Atomoxetine (Strattera) for the treatment of attention disorders in individuals with TBI determines if

the only drug approved for attention deficit hyperactivity disorder improves attention, behavioral

functioning, and depression in individuals with TBI, using a randomized double-blind placebo-controlled crossover study design. Research Project R2: A health and wellness intervention for individuals

with TBI, evaluates a specific, replicable small-group educational approach to improve health-related

self-efficacy, health promoting behaviors, and health-related quality of life in individuals with TBI

using a randomized wait list control group study design. If effective, this intervention could improve

the health and wellness of the many people with secondary conditions and less than healthy lifestyles

after TBI. Collaborative Module 1: Sexuality after TBI examines the frequency, type, and severity of

changes in sexual function associated with TBI. Collaborative Module 2: Natural history of headache

after TBI investigates incidence, prevalence, and types of headache after TBI. Collaborative Module 3:

Enhancing Core dataset to expand research on environmental influences affecting outcomes from TBI

evaluates the feasibility, reliability, and utility of recording geographic identifiers for place of residence

after TBI.
NIDRR Program Directory FY 2008 - Health and Function 2-21

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Health Services Research DRRP on Medical Rehabilitation

Northwestern University

Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611-2654

a-heinemann@northwestern.edu

www.ric.org/research/outcomes/drrp.php

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-2383

Project Number: H133A030807

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 03 $300,000; FY 04 $300,000; FY 05 $300,000; FY 06 $300,000; FY 07

$300,000; FY 08 (No-cost extension through 6/30/2009)

Abstract: This research addresses the need to improve the delivery of health services to persons with

disabilities by (1) evaluating the impact of Medicare’s inpatient rehabilitation facilities’ (IRF) prospective payment system (PPS) on access to rehabilitation services in terms of settings, services, and length

of stay; and (2) identifying the impact of comorbidities on how patients are classified and reimbursed

under the new IRF PPS. Medicare’s new PPS for IRF may limit effective access to care because

facilities will take fewer risks with patients deemed to be “high cost outliners,” hire more “therapy

extenders” rather than licensed professionals, and discharge patients at a higher rate to nursing facilities

rather than to community settings. The four specific aims of the research are to: (1) examine changes in

the organization of medical rehabilitation services in response to prospective payment; (2) examine

changes in patient access to medical rehabilitation settings and services resulting from organizational

responses to the change in reimbursement; (3) examine the impact of PPS-related changes in service

delivery on patient outcomes; and (4) identify the impact of comorbidities on classification and reimbursement in medical rehabilitation PPS.
2-22 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Reducing Obesity and Obesity-Related Secondary Conditions in

Adolescents with Disabilities

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Suite 712 M/C 626

Chicago, IL 60608-6904

jrimmer@uic.edu

www.rectech.org

Principal Investigator: James H. Rimmer, PhD

Public Contact: 312/413-9651; Fax: 312/355-4058

Project Number: H133A060066

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 06 $250,000; FY 07 $250,000; FY 08 $250,000

Abstract: This project examines the antecedents and consequences of obesity using the ICF framework that addresses both person and environment contextual factors that relate to obesity in adolescents with disabilities; evaluates the validity and utility of an alternative approach for establishing more

accurate cutoff points for overweight and obesity in adolescents with disabilities; develops a pilot

intervention using an innovative personalized exercise and nutrition program (PEP-for-Youth) for

managing obesity among youth with physical and developmental disabilities; and develops mutually

beneficial working partnerships with community-based organizations to promote reduction of obesity

in youth with disabilities. The research projects operate in partnership with Shriners Hospitals for

Children and five national disability organizations (Easter Seals, United Cerebral Palsy, Spina Bifida

Association, the Arc, and Blaze Sports America).
NIDRR Program Directory FY 2008 - Health and Function 2-23

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Midwest Regional Traumatic Brain Injury Model System: Innovative

Approaches to Improve Cognition, Function, and Community Living

Rehabilitation Institute Research Corporation

345 East Superior

Chicago, IL 60611

Principal Investigator: Elliot J. Roth, MD 312/238-4637

Public Contact: Linda Lovell, Project Coordinator 312/238-6197; Fax: 312/238-1417

Project Number: H133A080045

Start Date: October 01, 2008

Length: 48 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 08 $418,139

Abstract: The Midwest Regional Traumatic Brain Injury Model System (MRTBIMS) accomplishes

several important objectives in support of an interdisciplinary, multidimensional center focused on

providing and improving care for people with traumatic brain injury (TBI). MRTBIMS establishes a

coordinated, multilevel, interdisciplinary system of care for people with TBI, including pre-hospital,

emergency, acute, long-term acute, intensive rehabilitation, and community care. This continuum of

care is provided at Northwestern Memorial Hospital, RML Specialty Hospital, and the Rehabilitation

Institute of Chicago and its System of Care. Data is submitted on at least 100 TBI patients per year to

the National TBI Database. Research plans include implementation of two site-specific research

projects, which consist of clinical trials on the effectiveness of acupuncture to improve sleep in TBI

patients and on the effectiveness of a virtual reality robotics program to improve attention and concentration in TBI patients. The Center is engaged in dissemination of educational and other materials on

TBI to a variety of target audiences, including persons with TBI and their families, professionals who

care for patients with TBI, and the public—collaborating with the Brain Injury Association of Illinois

and other NIDRR-funded centers as appropriate.
2-24 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Maryland

Johns Hopkins University Burn Injury Rehabilitation Model System

(JHU-BIRMS)

Johns Hopkins School of Medicine

Johns Hopkins Burn Center Adult Unit

Johns Hopkins Bayview Medical Center Pediatric Unit

Johns Hopkins Hospital

4940 Eastern Avenue

Baltimore, MD 21224

smason23@jhmi.edu

www.hopkinsmedicine.org/burn/research/index.html

www.hopkinsmedicine.org/burn/research/psqscq.pdf

Principal Investigator: James A. Fauerbach, PhD 410/550-0894

Public Contact: Shawn Mason, PhD 410/550-9846; Fax: 410/550-8161

Project Number: H133A070045

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $362,500; FY 08 $362,500

Abstract: The Johns Hopkins University-Burn Injury Model System (JHU-BIMS) includes three

projects: two site-specific randomized, controlled trials (RCT), and one multi-site collaborative study.

The first site-specific project is an RCT to test the efficacy of an innovative “Augmented Exercise

Program” in enhancing recovery of strength and endurance in those with generalized deconditioning.

Preliminary results demonstrate that this 12-week, 36-session conditioning regimen, relative to baseline

and to usual care, significantly improves aerobic conditioning. The second site-specific project is an

RCT to test the effectiveness of an intervention entitled “Safety, Meaning, Activation, and Resilience

Training” (SMART). SMART is a four-session intervention that aims to reduce acute psychological

distress and sleep disturbance and to thereby prevent chronic psychiatric disorders and disability. Pilot

data show that SMART effectively reduces post-trauma distress, sleep disturbance, and depression.

The third project is a multi-site collaborative module entitled “Long-Term Follow-up of the National

Database Sample” that extends follow-up to five years post-burn. The NIDRR funded Burn Model

System national database provides an unprecedented opportunity to conduct a prospective, multi-site

study to assess the long term needs of burn survivors. The Johns Hopkins Burn Center continues to

contribute to the Burn Model System national database, as well.
NIDRR Program Directory FY 2008 - Health and Function 2-25

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Michigan

Michigan Traumatic Brain Injury Model System (SEMTBIS)

Wayne State University

5057 Woodward Avenue, Suite 6402

Detroit, MI 48202

ckoviak@dmc.org

www.semtbis.org

Principal Investigator: Robin A. Hanks, PhD 313/745-9763

Public Contact: Carole Koviak, RN 313/745-9737; Fax: 313/745-9854

Project Number: H133A080044

Start Date: October 01, 2008

Length: 48 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 08 $438,074

Abstract: SEMTBIS focuses on the following major areas: research, education, clinical and systems

analysis studies, collection and dissemination of data, and promotion of professional development for

individuals with disabilities as well as their family members or caregivers. Two studies address enhancement of health and function of persons with traumatic brain injury (TBI). Projects evaluate the

predictive validity of three newly developed brain magnetic resonance imaging (MRI) techniques with

respect to functional independence, level of disability, and neurobehavioral outcomes at one and two

years post-injury; and examine the safety and efficacy of an antibiotic medication that is thought to

positively influence neuroplasticity in the acute stages of recovery from TBI. SEMTBIS recruits,

educates, and promotes professional development of individuals with disabilities as well as their family

members or caregivers; with consumer involvement in the advisory board and as project staff.

SEMTBIS continues to participate in clinical and systems analysis studies of the TBIMS by collecting

and contributing data to a uniform, standardized national database on patient characteristics, diagnoses,

causes of injury, interventions, outcomes, and costs. Evaluation of these research projects and the

overall operations of the SEMTBIS employs a multifaceted approach of quantifiable and objective

procedures.
2-26 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Minnesota

Health Care Coordination for Individuals with Physical Disabilities:

Critical Elements and Consumer Outcomes

University of Minnesota

Institute on Community Integration

111 Pattee Hall

150 Pillsbury Drive Southeast

Minneapolis, MN 55455-0223

abery001@umn.edu

Principal Investigator: Brian Abery, PhD

Public Contact: 612/625-5592; Fax: 612/624-9344

Project Number: H133A080049

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 08 $277,233

Abstract: This project creates new knowledge about health care coordination within Minnesota’s

Special Needs Basic Care (SNBC) program. Project activities include establishing and testing an

operational definition of health care coordination for adults with physical disabilities and examining the

extent to which the various components of health care coordination enhance access to health care,

improve health outcomes, and create cost savings. The project uses a Participatory Planning and

Decision Making process and key informant interviews to identify, classify, and richly describe care

management models used in SNBC as well as the critical components of effective care coordination.

Cognitive testing and reliability and validity assessment are used to modify several instruments to

measure the elements of managed care and managed care outcomes for persons with physical disabilities. Finally, a combination of survey research (in-person interviews) and analysis of secondary data

sets (Centers for Medicaid and Medicare utilization information, and Minnesota Department of Human

Services assessment and utilization data) is used to examine managed care outcomes for a total of 350

individuals participating in the SNBC program, taking into account variables such as type and severity

of disability (including the presence of dual diagnoses), urban or rural location, age, and other demographic characteristics known or hypothesized to be associated with health care access, outcomes and

costs. The impact of care coordination models is tested on several outcomes including health care

access (Health Care Quality Scale, annual DHS mandated health care accessibility survey results),

outcomes (including but not limited to health care self-direction, stress, disability impact), and costs.

Products from this line of research include an operational definition of the elements of care coordination, validated reliable instrumentation to measure elements of care coordination, and academic and

research-to-practice publications describing the impact of care coordination on access to health care,

health care outcomes, and cost.
NIDRR Program Directory FY 2008 - Health and Function 2-27

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Minnesota

Mayo Clinic Traumatic Brain Injury Model System

Mayo Clinic

Mayo Clinic College of Medicine

Mayo Foundation for Medical Education and Research

200 First Street

Rochester, MN 55905

brown.allen@mayo.edu

www.mayo.edu/model-system

Principal Investigator: Allen W. Brown, MD

Public Contact: Anne Moessner 507/255-3116; Fax: 507/255-7696

Project Number: H133A070013

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 07 $423,590; FY 08 $423,590

Abstract: The purpose of the Mayo Clinic Traumatic Brain Injury Model System (TBIMS) is to

provide comprehensive, integrated, team-based rehabilitation care and education to individuals with

traumatic brain injury (TBI), their families, and significant others along the continuum of recovery and

to fill gaps in research knowledge and service delivery through clinical research that promotes full

personal and social participation. The Mayo Clinic TBIMS conducts one site-specific project. This

project, an Advocacy Training Clinical Trial (ATCT), targets the gap in knowledge concerning the

most efficacious method of teaching effective self and system advocacy skills. The goal of the ATCT is

to identify efficacious advocacy training methods using a randomized practical behavioral trial methodology in three Midwest states. Objectives of the ATCT are threefold: (1) develop TBI specific measures of advocacy activity, perceived control, and self efficacy; (2) implement, evaluate, and continuously improve upon the ATCT; and (3) assess the statewide impact of the ATCT on greater

communities, public policy, systems change, and in the media. The ATCT is designed to establish a

sustainable program of efficacious and effective advocacy training in the trial communities, and provide a model for implementation in other communities.
2-28 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Jersey

A Multicenter Prospective Randomized Controlled Trial of the

Effectiveness of Amantadine Hydrochloride in Promoting Recovery of

Function Following Severe Traumatic Brain Injury

JFK Johnson Rehabilitation Institute

Center for Head Injuries

2048 Oak Tree Road

Edison, NJ 08820

jgiacino@solarishs.org

www.njrehab.org/tbims/index.asp

—Principal Investigator: Joseph T. Giacino, PhD

Public Contact: 732/205-1461; Fax: 732/632-1584

Project Number: H133A031713

Start Date: January 01, 2004

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 03 $599,862; FY 04 $599,994; FY 05 $599,994; FY 06 $599,994; FY 07

$599,994; FY 08 (No-cost extension through 12/31/2009)

Abstract: In this study, eight facilities (three of which are also Traumatic Brain Injury [TBI] Model

Systems), join with a Data Coordinating Center at Columbia University, to conduct a prospective

double blind randomized controlled trial of amantadine. More than 180 patients who remain in vegetative state (VS) or minimally conscious state (MCS) 4-16 weeks post-TBI are randomized in a stratified

fashion to 4 weeks of amantadine (200-400 mg/day) vs. placebo, followed by a 2-week washout

period. The Disability Rating Scale is the primary dependent variable with the Coma Recovery ScaleRevised serving as a supplementary measure. The project also explores whether treatment response

differs by time post-injury and by diagnosis (i.e., VS or MCS) at treatment onset, and whether specific

outcomes of importance to caregivers are achieved more often in the amantadine group.
NIDRR Program Directory FY 2008 - Health and Function 2-29

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Jersey

JFK-Johnson Rehabilitation Institute TBI Model System

JFK Johnson Rehabilitation Institute

2048 Oak Tree Road

Edison, NJ 08820

tbims@solarishs.org

www.njrehab.org/tbims

Principal Investigator: Keith D. Cicerone, PhD

Public Contact: 732/906-2640; Fax: 732/906-9241

Project Number: H133A070030

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $419,921; FY 08 $419,921

Abstract: Site-specific research represents a sustained investigation of cerebral activation in patients

with disorders of consciousness (DOC): vegetative state (VS) and minimally conscious state (MCS).

At present, clinical judgment and experience guide diagnostic, prognostic, and treatment decisions for

individuals with DOC. Prior research on fMRI activation patterns suggests that patients in MCS retain

the neural circuits for receptive language and visual processing. This project tests a novel fMRI protocol that is designed to reliably detect conscious awareness in patients who may be unable to execute

behavioral signs of active cognitive processing, using a hierarchical stimulation paradigm that systematically assesses levels of cognitive processing in the auditory and visual systems. In light of provocative findings suggesting that cognitive processing may be maintained in patients who appear to be

unconscious on bedside examination, the investigation is extended to individuals with VS as well as

those in MCS. A collaborative module extends prior investigations of the effectiveness of specialized,

post-acute brain injury rehabilitation. This project is driven by the question of how to characterize the

course of post-acute brain injury rehabilitation, and its impact on the long term outcomes of people

with brain injuries. Although there is increasing evidence that postacute brain injury rehabilitation can

improve functional outcomes after TBI, population-based outcome studies have generally not considered the influence of different pathways of postacute rehabilitation on outcomes after TBI. A longitudinal, observational study characterizes postacute rehabilitation in the TBI Model Systems, and examines

the pathways of postacute rehabilitation in relation to casemix variables, patterns of service utilization,

barriers to service delivery, and participants’ perceived needs and satisfaction with treatment. This

collaborative project examines the contribution of postacute rehabilitation to functional and psychosocial outcomes at one and two years after injury using multivariate analyses and causal modeling.
2-30 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Jersey

Northern New Jersey Traumatic Brain Injury System (NNJTBIS)

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

tbi@kmrrec.org

www.kmrrec.org/nnjtbis/index.php

Principal Investigator: Elie P. Elovic, MD 973/243-6815

Public Contact: 973/243-2015; Fax: 973/324-3536

Project Number: H133A070037

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $423,590; FY 08 $423,590

Abstract: The Northern New Jersey Traumatic Brain Injury System (NNJTBIS) conducts both a sitespecific research study and a collaborative research module. These projects, both related to ongoing

NIH-funded studies, contribute to evidence-based rehabilitation interventions and quality of life measurement to improve the lives of individuals with TBI, as follows: (1) An innovative, double-blind,

randomized controlled trial of a cognitive rehabilitation intervention utilizing a proven methodology

shown to be effective with the multiple sclerosis population; and (2) a collaborative module that adapts,

develops, and validates an innovative quality-of-life outcome measurement system for use in TBI

intervention research. Each of these projects has been subjected to initial pilot testing to assure the

applicability and feasibility of the methodology. The evaluation of this project is guided by a multifaceted approach, which uses a highly quantifiable, objective means of evaluating progress. This is

supplemented by a Community Advisory Board, NNJTBIS Steering Committee, and an external

Scientific Advisory Board, which provides feedback on a quarterly, annual, and bi-annual basis,

respectively. In addition, project management staff meets internally on a regular basis to review data

management and data quality issues and assure effective communication with Kessler Institute for

Rehabilitation (KIR) and staff from the trauma centers. Finally, the NNJTBIS coordinates with the

NIDRR-funded Model Systems Knowledge Translation Center at the University of Washington to

provide scientific results and information for dissemination to clinical and consumer audiences. The

NNJTBIS is a cooperative effort of the Kessler Medical Rehabilitation Research and Education Center

(KMRREC), KIR, and trauma centers from the University of Medicine and Dentistry of New Jersey -

The New Jersey Medical School (UMDNJ-NJMS), Hackensack University Hospital, Morristown

Memorial Hospital, and St. Joseph’s Hospital.
NIDRR Program Directory FY 2008 - Health and Function 2-31

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

New York Traumatic Brain Injury Model System (NYTBIMS)

Mount Sinai School of Medicine

Department of Rehabilitation Medicine; Research and Training Center

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

www.mssm.edu/tbicentral/nytbims/

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372; Fax: 212/348-5901

Project Number: H133A070033

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 07 $419,921; FY 08 $419,920

Abstract: The research program of The New York Traumatic Brain Injury Model System

(NYTBIMS) aims to advance the understanding of TBI and develop better methods of treating secondary conditions of TBI, especially fatigue, mood, cognition, and sleep disorders. Research goals of

this project are to: (1) demonstrate and evaluate a multidisciplinary system of care for persons with TBI

in the New York City metropolitan area, including a number of innovative clinical programs; (2)

contribute longitudinal data to the National Database of the TBI Model Systems program; and (3)

conduct one module and two local studies to: (a) systematically study sleep architecture, insomnia, and

other types of sleep disorders after TBI, to better understand post-TBI fatigue; and (b) evaluate the

effectiveness of exercise as a treatment of post-TBI fatigue, mood, and cognition. Dissemination,

education, and training activities constitute the third component of the NYTBIMS, including a policy

newsletter, expanded web-based information, journal publications, presentations at national and local

meetings, a newsletter for consumers, and several formal educational and training programs, including

training of physiatric residents as well as interns and postdoctoral researchers in psychology.
2-32 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Classification and Measurement of Medical Rehabilitation

Interventions

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

One Gustave Levy Place, Box 1240

New York, NY 10029-6574

marcel.dijkers@mssm.edu

Principal Investigator: Marcel Dijkers, PhD

Public Contact: 212/659-8587; Fax: 212/348-5901

Project Number: H133A080053

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 08 $350,000

Abstract: The development of a Rehabilitation Treatment Taxonomy (RTT) covering all treatments

(experience-based, medications, education, assistive devices, etc.) delivered in medical rehabilitation is

a multi-year, multidisciplinary process requiring the interweaving of many different conceptual and

empirical steps, which needs to be guided by an overall blueprint to direct and link individual efforts.

This project develops such a blueprint, and performs research to explore strategies and methods that

are needed to create and test the full RTT. Specifically, in phase 1, the project scrutinizes existing

treatment literature for theories that underlie treatment; develops a theoretical framework; specifies

performance requirements and practical constraints for an RTT; and reviews existing ad-hoc classifications for SCI, TBI, stroke, and joint replacement rehabilitation for practicality. Researchers plant to

present the resulting blueprint for feedback at an interdisciplinary conference with representatives of all

rehabilitation disciplines, revised as necessary in response to feedback, and, in phase 2, used to develop two partial taxonomies: (a) of interventions to improve ambulation in persons with neurological

disorders, and (b) of treatments of executive dysfunction after acquired brain injury. Evaluation of the

process of development and operationalization of the taxonomy is used to modify, expand, and enhance the blueprint. A second interdisciplinary conference is used to present the modified blueprint to

the rehabilitation field and obtain input on directions the field needs to take to develop the entire RTT.
NIDRR Program Directory FY 2008 - Health and Function 2-33

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

North Carolina

Carolinas Traumatic Brain Injury Rehabilitation and Research System

(CTBIRRS)

Carolinas HealthCare System

Carolinas Rehabilitation

1100 Blythe Boulevard

Charlotte, NC 28203

fhammond@carolinas.org

www.carolinasrehabilitation.org/body.cfm?id=191

Principal Investigator: Flora M. Hammond, MD

Public Contact: 704/355-4330; Fax: 704/355-0709

Project Number: H133A070042

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $438,571; FY 08 $438,571

Abstract: The Carolinas Traumatic Brain Injury Rehabilitation and Research System (CTBIRRS) is a

comprehensive service delivery and research system serving individuals with traumatic brain injury

(TBI). The System begins with prevention and emergency medical services and extends through

intensive care, acute care, and comprehensive medical rehabilitation to long-term follow-up, community reintegration, and vocational rehabilitation. The research of this Model System focuses on the

challenging problem of post-traumatic irritability and aggression using a comprehensive, rigorous

approach to generate and disseminate new knowledge on this high impact, pervasive, and understudied problem. This approach to understanding irritability entails two randomized, controlled studies

that build on a solid base of prior research by the investigators in this area: (1) a multi-center module

study: “A Multi-Center, Parallel-group, Randomized, Double-Blind, Placebo-Controlled Trial of

Amantadine Hydrochloride for the Treatment of Chronic TBI Irritability and Aggression: A Replication Study”; and (2) a local research study: “Carbamazepine for the Treatment of Chronic Post-TBI

Irritability and Aggression: A 42-day Single-Site, Forced-Titration, Parallel-Group, Randomized,

Double-Blind, Placebo-Controlled Trial.” The research studies were developed with in-depth input

from the TBI community, with a solid plan for continued input along the course of the project through

all aspects including research implementation, interpretation of findings, knowledge translation, project

planning, and evaluation. The evaluation plan is directly linked to the target impacts, and provides a list

of clear criteria to facilitate project administration, judge success, ensure dissemination of findings, and

provide iterative feedback. CTBIRRS utilizes innovative means of knowledge translation to target

audiences (consumers, providers, researchers, third party payers, policy makers), including a consumer

conference, provider skill packs and workshops, fact sheets, tip cards, surveys of current practices,

peer-reviewed publications, scholarly presentations, and evidence-based reviews. The project evaluates

target familiarity with the subject matter and product usefulness. The CTBIRRS project collaborates

with the Model System Knowledge Translation Center to disseminate materials that integrate project

findings within the larger body of research on post-TBI behavioral management.
2-34 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

North Carolina

TBI Model System Collaborative Study of Amantadine for Post TBI

Irritability and Aggression

Carolinas Medical Center

1100 Blythe Boulevard

Charlotte, NC 28232

flora.hammond@carolinashealthcare.org

www.carolinasrehabilitation.org/body.cfm?id=200

Principal Investigator: Flora M. Hammond, MD

Public Contact: 704/355-4330; Fax: 704/355-0709

Project Number: H133A080035

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 08 $855,000

Abstract: This study focuses on the challenging problem of irritability (primary aim) and aggression

(secondary aim) in post-traumatic brain injury by using a rigorous approach to generate and disseminate new knowledge on this high impact, pervasive, and under-studied problem that affects approximately 29-71 percent of individuals with traumatic brain injury (TBI). Building upon prior research,

project goals include: (1) assess the effect of amantadine for 28 days at reducing TBI irritability; (2)

assess the effect of amantadine for 28 days at reducing TBI aggression; (3) assess the effect of amantadine for 60 days on TBI irritability and aggression; and (4) assess the effect of amantadine on cognitive

function following TBI. Continuous input from the TBI community is incorporated into the development and implementation of the project, and throughout the course of this project in the areas of

research implementation, interpretation of findings, knowledge translation, project planning, and

evaluation. Additionally, this project is a collaborative research partnership between five other prominent TBI research centers: University of Washington, The Institute for Rehabilitation and Research,

The Ohio State University, Kessler Institute for Rehabilitation, and Spaulding Rehabilitation Hospital.

The knowledge generated by this project benefits those living with TBI by increasing awareness

through targeted products and training with healthcare providers, consumers, researchers, vocational

counselors, independent living providers, third party payers, and policy makers.
NIDRR Program Directory FY 2008 - Health and Function 2-35

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Ohio

Ohio Regional TBI Model System

Ohio Valley Center for Brain Injury Prevention and Rehabilitation

Department of Physical Medicine and Rehabilitation

Ohio State University

Dodd Rehabilitation Hospital

480 Medical Center Drive

Columbus, OH 43210

lamb-hart.1@osu.edu

www.ohiovalley.org

Principal Investigator: John D. Corrigan, PhD; Jennifer Bogner, PhD; 614/293-3830

Public Contact: Gary Lamb-Hart 614/293-3802; Fax: 614/293-8886

Project Number: H133A070029

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 07 $434,393; FY 08 $434,354

Abstract: This project includes one local research project and a collaborative research module. The

local project is an extension of two previous randomized clinical trials in which a targeted financial

incentive was found efficacious for engaging and retaining persons with traumatic brain injury (TBI) in

substance abuse treatment. The current study investigates the efficacy of a financial incentive for

engendering attendance at work as persons with TBI and substance use disorders initiate employment.

The collaborative research module replicates and extends a preliminary study recently completed at

OSU. That project used geographic identifiers to compile data about the social and economic characteristics of a person’s neighborhood. Researchers then examined the contribution of these environmental factors to outcomes from TBI. The current module contributes to an evaluation of the utility of

adding a geographic identifier, based on a person’s residence at follow-up, to the TBI Model Systems

National Dataset. With this identifier, future Model Systems researchers could access an ever-growing

array of information about the environment and link it to Model Systems data about an individual’s

outcome. Dissemination efforts include “SynapShots”, an educational website produced with the Brain

Injury Association of America, and a systematic review of Screening and Brief Interventions for the

Model Systems Knowledge Translation Center. t:
2-36 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Ohio

Individualized Planning for the First Year Following Acute

Rehabilitation Project

Ohio State University

1166 Dodd Rehab Hospital

480 Medical Center Drive

Columbus, OH 43210

lamb-hart.1@osu.edu

www.ohiovalley.org

Principal Investigator: John D. Corrigan, PhD

Public Contact: Gary Lamb-Hart 614/293-3830; Fax: 614/293-4870

Project Number: H133A080023

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 08 $854,780

Abstract: This project is a multi-center research partnership among the Ohio Regional TBI Model

System, the Institute for Clinical Outcomes Research in Salt Lake City, Utah, and the TBI Model

Systems National Data and Statistical Center and the Rocky Mountain Regional Brain Injury System

at Craig Hospital in Colorado. This project conducts a Clinical Practice Improvement (CPI) study of

individual differences in demographic characteristics, pre-morbid status, injury-related conditions, and

medical course that differentially predict the effectiveness of rehabilitation interventions on functional

independence, participation, and subjective well-being up to one year following traumatic brain injury

(TBI). Incorporating data collected for the NIH-funded CPI study, this project focuses on acute rehabilitation, and on the recovery processes occurring after discharge from rehabilitation. CPI methodology studies naturally occurring differences in treatment practices in order to identify individual differences in treatment effectiveness. It allows a large number of intervention-by-impairment interactions to

be examined, while individual patient differences, including severity of TBI and medical complications, are controlled. Data is collected at 11 TBI rehabilitation programs in the United States and

Canada: Ohio Regional TBI Model System, Carolinas TBIMS Model System, New York TBIMS at

Mt. Sinai, National Rehabilitation Hospital, Shepherd Center, Intermountain Medical Center, Rush

University Medical Center, Brooks Rehabilitation Hospital, Loma Linda University Rehabilitation

Institute, Montreal Rehabilitation Institute, and the Toronto Rehabilitation Institute. Research subjects

are 2,315 consecutive, consenting patients admitted for rehabilitation of a moderate or severe TBI.

Interviews occur at three and six months post-discharge and one year post-injury allowing for detailed

characterization of change during the first year of recovery.
NIDRR Program Directory FY 2008 - Health and Function 2-37

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Oregon

Health and Health Care Disparities Among Individuals with Disabilities

Oregon Health and Science University

Child Development and Rehabilitation Center

P.O. Box 574

Portland, OR 97239

Principal Investigator: Charles Drum, PhD 503/494-8364

Public Contact: Susan Wingenfeld 503/494-3533; Fax: 503/494-6868

Project Number: H133A080031

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 08 $450,000

Abstract: The Health Disparities Project generates new knowledge about health access and health

outcomes, and translates and disseminates the findings for researchers, policy makers, and others.

Assisted by an assembled national expert panel and other key project staff, the project determines

working definitions, key questions, and analytic models for the studies. Disability perspectives are

integrated throughout the project process from development of the research hypotheses and selection of

design to analysis of data. This project has four major components: (1) review and synthesize existing

health and health care access among individuals with disabilities and subgroups of individuals with

disabilities; (2) use the Medical Expenditure Survey data to perform two series of logistic regression

and path analysis modeling studies; the first series of studies determines models of systems level,

environmental level, and individual level factors that relate to health care access among persons with a

range of disabilities; the second series extends these analyses to determine models of health outcomes

for persons with a range of disabilities; (3) utilize research findings in future research, program, and

policy development through proactive and passive dissemination methods; and (4) integrate project

activities to ensure the field of health disparities research advances beyond documentation to explanation, and opportunity for resolution.
2-38 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Pennsylvania

The Moss Traumatic Brain Injury Model System

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

60 East Township Line Road

Elkins Park, PA 19027

thart@einstein.edu

www.einstein.edu/facilities/mossrehab/index.html

Principal Investigator: Tessa Hart, PhD

Public Contact: 215/663-6153; Fax: 215/663-6113

Project Number: H133A070040

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $434,399; FY 08 $434,399

Abstract: The Moss TBIMS includes two site-specific research projects embedded within a state-ofthe-art traumatic brain injury (TBI) treatment and clinical research facility. Project 1 is a placebocontrolled pilot study of the effects of dextroamphetamine (DEX) on attention, engagement in therapy,

cognitive and motor speed, and other outcomes in subacute TBI. This project also examines the

possibility that DEX accelerates the pace of functional recovery in the subacute phase. Project 2 is a

cross-national collaboration with a specialty TBI service in a Copenhagen hospital, which has many

similarities to the Moss TBIMS in terms of patient mix, treatment philosophy, and cultural milieu. The

Copenhagen facility provides significantly longer and, in some respects, more intensive inpatient care

and rehabilitation compared to Moss (and other US rehabilitation facilities), even for patients with

comparable injury severity. This affords a natural experiment in which persons with TBI treated at the

two facilities are compared on a range of 6- and 12-month outcomes, including functional status,

emotional well-being and quality of life, and caregiver burden. The Moss TBIMS also collaborates in

multi-center longitudinal database research and collaborative module projects. In addition, extensive

knowledge translation projects provide evidence-based skills and knowledge enhancement for clinicians specializing in TBI care and for consumers via collaboration with the Brain Injury Association of

Pennsylvania.
NIDRR Program Directory FY 2008 - Health and Function 2-39

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

North Texas Burn Rehabilitation Model System (NTBRMS)

The University of Texas Southwestern Medical Center

Department of Physical Medicine and Rehabilitation

5323 Harry Hines Boulevard

Dallas, TX 75390-9136

radha.holavanahalli@utsouthwestern.edu

www.utsouthwestern.edu/utsw/home/research.ntbrms

Principal Investigator: Karen Kowalske, MD 214/648-2288

Public Contact: Radha Holavanahalli, PhD 214/648-9540; 214/648-3654; Fax: 214/648-2005

Project Number: H133A070024

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 07 $362,500; FY 08 $362,500

Abstract: The North Texas Burn Rehabilitation Model System (NTBRMS) includes one collaborative

research module project entitled “Axillary Burn Scar Contracture Prevention with Immediate PostOperative Casting and Splinting”, and two site specific research studies entitled “Biomechanical

Properties of Burn Scar” and “Efficacy of Social Interaction Skills Training Post Burn Injury.” Collaboration occurs on many levels at the NTBRMS. Clinical collaboration is the hallmark of the burn

team, which includes individuals from several institutions who work together seamlessly as well as

collaboration with our rural care providers through outreach clinics. Research collaboration occurs

locally with the surgeons and academic computing and nationally with the other model systems. The

evaluation plan specifically focuses on the overall objectives for demonstration, research, and dissemination with specific quantifiable targets, which are reassessed quarterly. Dissemination of NTBRMS

materials occurs at many levels and in a variety of formats: lectures by key personnel, publication in

peer reviewed journals, a quarterly newsletter, and an accessible website available in English and

Spanish. The NTBRMS collaborates with NIDRR-funded Model Systems Knowledge Translation

Center (MSKTC) by participating in its systematic reviews of evidence and facilitating knowledge

management by identifying the information needs and barriers among the various stakeholders both at

national and local levels.
2-40 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

North Texas Traumatic Brain Injury Model System (NT-TBIMS)

The University of Texas Southwestern Medical Center

Department of Neurology

5323 Harry Hines Boulevard

Dallas, TX 75390-9036

caryn.harper@utsouthwestern.edu

www.utsouthwestern.edu/utsw/home/research/neurology/tbi/index.html

Principal Investigator: Ramon R. Diaz-Arrastia, MD, PhD 214/648-6409

Public Contact: Caryn R. Harper, MS, Project Manager 214/648-7613; Fax: 214/648-3143

Project Number: H133A070027

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 07 $430,350; FY 08 $430,350

Abstract: This project provides comprehensive continuum of care for traumatic brain injury (TBI)

from the time of arrival at the emergency department through the intensive care unit, inpatient and

outpatient rehabilitation, and long-term follow-up after community integration. The project conducts

two local research projects aimed at furthering the goal of developing novel therapies and tailoring

these therapies to individual patients: (1) A Phase II randomized, placebo-controlled clinical trial to

determine whether therapy with recombinant human growth hormone (rhGH) during the acute rehabilitation period after TBI results in improved functional outcome; and (2) an observational study using

magnetic resonance imaging (MRI) during the acute rehabilitation period to validate the use of Diffusion Tensor Imaging (DTI) as a biomarker of diffuse axonal injury. Additionally, the NT-TBIMS

works collaboratively with other TBI-MS Health Module members in a modular project to develop a

Brain Injury Assessment Scale, which allows reliable and validated assessment of sensorimotor impairments after TBI. The goal is that this scale be as useful in the TBI field as the NIH Stroke Scale has

been in clinical trials in stroke. Finally, the NT-TBIMS provides patient and family education, and

dissemination of research findings to the professional community by conducting seminars, presenting

the results at professional meetings, and publishing in professional and lay journals devoted to TBI.
NIDRR Program Directory FY 2008 - Health and Function 2-41

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Pediatric Burn Injury Rehabilitation Model System

University of Texas Medical Branch

815 Market Street, Route 1220

Galveston, TX 77550

dherndon@utmb.edu; patblakeney@earthlink.net; Jlbailey@utmb.edu

Principal Investigator: David Herndon, MD 409/770-6731

Public Contact: Pat Blakeney, PhD 409/770-6718 or 713/661-1745; 409/770-6731; Fax: 713/661-

2871; 409/770-6919

Project Number: H133A070026

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 07 $362,500; FY 08 $362,500

Abstract: This program conducts independent and multi-center projects focusing on evaluating and

improving the rehabilitation provided to children with burn injuries, striving to decrease disability and

improve reintegration into society. The model system includes one collaborative project assessing the

efficacy of long term use of propranolol in the treatment of burn injury (in adults and children) with

endpoints of improved survivability, improved cardiovascular condition, greater energy, improved

muscle endurance, improved growth in children, and decreased anxiety. The project also includes a

site-specific study to improve rehabilitative outcomes for children with greater than 40 percent total

body surface area burned by combining an anabolic agent (oxandrolone, Ketoconazole, or propranolol) with a 3-month intensive outpatient rehabilitation program. The supervised exercise program has

shown to be effective in ameliorating effects of the hypermetabolic response. This project assesses the

effectiveness of combining the anabolic agents and the exercise program with the expectation that the

effects will be additive and will improve linear growth, bone mass, muscle strength, lean body mass,

physical function, and general well-being. The last study, also site specific, is a continuation from the

previous funding cycle. It focuses on Acute Stress Disorder (ASD) and Post Traumatic Stress Disorder

(PTSD), a problem that impairs the well-being of burn patients. The study follows children with ASD

to access the relationship of the two disorders and to elucidate a history of the development of PTSD.
2-42 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

The Texas Traumatic Brain Injury Model System of TIRR

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Avenue

Houston, TX 77030

mark.sherer@memorialhermann.org

www.memorialhermann.org/locations/TIRR_tbi.html

Principal Investigator: Mark Sherer, PhD

Public Contact: 713/799-7007

Project Number: H133A070043

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 07 $430,350; FY 08 $430,350; FY 09 $430,350

Abstract: The Texas TBI Model System of TIRR conducts a program of research, dissemination

activities, and clinical care designed to address social relationships and to improve outcomes for

persons with TBI. Research activities include: (1) contributions to the TBI Model Systems National

Database, (2) a collaborative, multi-center, research module project on sexuality after TBI, and (3) a

local project on social communication difficulties after TBI. A collaborative project on sexuality

determines the frequency, type, and severity of changes in sexual functioning after TBI. As part of this

project, researchers conduct the first randomized, clinical trial of an intervention to increase satisfaction

with sexual functioning and comfort level in discussing sexual issues for persons with TBI and their

partners. A local project on social communication conducts a randomized clinical trial of an intervention to improve social communication skills and social integration for persons with TBI, with the

largest sample size of any similar study and one of only two randomized controlled trials conducted in

this area for over 20 years.
NIDRR Program Directory FY 2008 - Health and Function 2-43

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Virginia

Medicaid Quality Indicators for Individuals with Disabilities

George Mason University

College of Health and Human Services

Center for the Study of Chronic Illness and Disability

4400 University Drive MS 5B7

Fairfax, VA 22030

spalsbo@gmu.edu

chhs.gmu.edu/ccid

Principal Investigator: Susan E. Palsbo, PhD

Public Contact: 541/505-7591; Fax: 541/505-7591*51

Project Number: H133A040016

Start Date: July 01, 2004

Length: 48 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 04 $299,999; FY 05 $299,999; FY 06 $299,999; FY 07 $299,999; FY 08 (Nocost extension through 06/30/2009)

Other Funding: FY 07 $367,359 (California HealthCare Foundation)

Abstract: This project develops and validates health service quality indicators for people with disabilities. The target population to be served is people with disabilities enrolled in managed Medicaid

programs. The goal is to develop and field test quality measures for people with disabilities in managed

care organizations. The specific aims are: (1) Case identification: Improve the computer algorithm for

Medicaid plans to identify beneficiaries who have disabilities. (2) Plan-reported indicators: Select a

subset of existing HEDIS Medicaid measures that are appropriate and statistically meaningful for

indicating the quality of care for the people identified in Aim#1. (3) Consumer-reported indicators:

Assess the content validity of the Axis-CAHPS survey. (4) Develop comparative reporting tools of the

quality of care between and within health plans. This is a combined qualitative and quantitative study

with three interrelated segments: (1) Extend previous research on using routine health claims data to

identify beneficiaries who are at risk of needing modified help to access their Medicaid benefits and

services; (2) review and refine the two most widely used Medicaid quality indicator tools, CAHPS and

HEDIS; and extend work on refining the CAHPS instrument for people with physical disabilities; and

(3) explore how people with disabilities, payers, and providers can use the indicators to improve

practice and report outcomes using comparative reporting tools.
2-44 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Virginia

Virginia Commonwealth Traumatic Brain Injury Model System

Virginia Commonwealth University

Department of Physical Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0452

jhmarwit@vcu.edu

www.tbi.pmr.vcu.edu

Principal Investigator: Jeffrey S. Kreutzer, PhD 804/828-9055

Public Contact: Jennifer Marwitz 804/828-3704; Fax: 804/828-2378

Project Number: H133A070036

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 07 $426,720; FY 08 $426,720

Abstract: This project utilizes rigorous scientific methods to examine the benefits of intervention for

survivors of traumatic brain injury (TBI) and their families before and after inpatient rehabilitation

discharge. Traumatic Brain Injury Model Systems (TBIMS) and other researchers have expended

considerable energy delineating outcomes. For example, researchers have thoroughly documented

problems after injury, including memory disturbance, impaired self-awareness, executive skills dysfunction, slowness, visual dysfunction, poor motor coordination, and behavioral disorders. Recent

studies have identified a high prevalence of depression, with many survivors reporting feelings of

hopelessness, diminished self-esteem, and social isolation. Brain injury also affects the family system;

family members commonly describe emotional distress, lack of respite, financial stress, and lack of

community support. Projects at the Model System focus on both survivors and families. One study is a

randomized controlled trial to examine the efficacy of a structured approach to the treatment of acute

cognitive and neurobehavioral problems. A second study is a randomized controlled trial to examine

the benefits of an intervention program for family crisis and support.
NIDRR Program Directory FY 2008 - Health and Function 2-45

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

University of Washington Burn Model System

University of Washington

Department of Surgery, Division of Plastic Surgery

Harborview Medical Center

325 Ninth Avenue

Box 359796

Seattle, WA 98104

engrav@u.washington.edu

depts.washington.edu/uwnidrr/

Principal Investigator: Loren H. Engrav, MD

Public Contact: 206/731-3209; Fax: 206/731-3656

Project Number: H133A020103

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000; FY 03 $300,000; FY 04 $300,000; FY 05 $300,000; FY 06

$300,000; FY 07 (No-cost extension through 9/30/2008); FY 08 (No-cost extension through 12/31/

2009)

Abstract: This model system conducts five research projects: (1) A New Approach to the Etiology of

Hypertrophic Scarring develops an increased understanding of hypertrophic scarring. (2) Effect of

Virtual Reality on Active Range-of-Motion During Physical Therapy uses distraction via immersive

virtual reality as an adjunctive non-pharmacologic analgesic. This study tests the hypothesis that virtual

reality allows patients to tolerate greater stretching during physical therapy compared to no distraction,

and that in spite of achieving greater range-of-motion, patients still experience lower pain levels while

in virtual reality. (3) Determination of Reasons for Distress in Burn-Injured Adults identifies reasons

behind a burn survivor’s distress at various time-points after hospital discharge. (4) Barriers for Return

to Work identifies specific barriers to return to work for burn survivors. (5) Acute Stress Disorder

Among Burn Survivors evaluates the effectiveness of cognitive-behavioral therapy, relative to a nondirective, supportive therapy control group, and a national comparison sample in reducing the prevalence of posttraumatic stress disorder diagnosis and symptom severity. Projects 4 and 5 are collaborative. In addition, this project participates in the national database.
2-46 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

The Effect of Scheduled Telephone Intervention on Outcomes After

Traumatic Brain Injury (TBI)

University of Washington

Department of Rehabilitation Medicine

Box 356490, BB-953 Health Sciences

Seattle, WA 98195

krbell@u.washington.edu

depts.washington.edu/rehab/tbi

Principal Investigator: Kathleen R. Bell, MD

Public Contact: 206/685-0935; Fax: 206/685-3244

Project Number: H133A040004

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $600,000; FY 05 $600,000; FY 06 $600,000; FY 07 $600,000; FY 08

$600,000

Abstract: This project evaluates the effect of scheduled telephone intervention (STI) on functional and

health outcomes, at weeks 1-2, 4, 8, and 12, and months 5, 7, and 9 on functional level, health and

emotional status, community integration, and perceived quality of well-being over 1 year after TBI.

This a low-cost, easily-implemented intervention is trialed in three states. Timely intervention to identify problems after TBI, to teach patients and their families coping techniques within their own communities and support their independent decision-making, may effectively decrease the need for expensive

and often inaccessible services and may improve the quality of life for survivors of TBI. Researchers

are evaluating the effect of additional STI at months 15, 18, and 21 on the same variables and employment at 2 years after TBI. Research examines whether the effects of such intervention are similar in

multiple sites over a wide geographic area. It also examines the differential impact of the intervention

in demographic subgroups, with particular attention to minority versus non-minority racial and ethnic

populations.
NIDRR Program Directory FY 2008 - Health and Function 2-47

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

Controlled Trial of Venlafaxine XR for Depression After SCI: A

Multisite Study

University of Washington

Department of Rehabilitation Medicine

Harborview Medical Center

325 9th Avenue

Seattle, WA 98104

chb@u.washington.edu

sci.washington.edu

Principal Investigator: Charles H. Bombardier, PhD

Public Contact: 206/744-3665; Fax: 206/685-3244

Project Number: H133A060107

Start Date: January 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $2,198,213; FY 07 $899,981; FY 08 $899,982

Abstract: This project is a multisite, randomized, double-blind, placebo controlled trial of venlafaxine

XR (Effexor XR) in 168 adults with spinal cord injury (SCI) and major depressive disorder (MDD)

who are 18-65 years old and one or more years post injury. The purpose of the study is to examine the

efficacy and tolerability of venlafaxine XR as a treatment for MDD. The primary outcome is the

percent of responders (those who report at least a 50% reduction in depression severity from baseline

to the end of treatment) in the venlafaxine XR versus placebo control group using intent-to-treat

analysis. Secondary outcomes include changes in pain, health related quality of life, and participation.

A successful clinical trial could lead to more aggressive identification and treatment of MDD as well as

improved health and quality of life in this important population. This is a collaborative project with the

Northwest Regional Model Spinal Cord Injury System.
2-48 NIDRR Program Directory FY 2008 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

University of Washington Burn Model System

University of Washington

Department of Surgery, Division of Plastic Surgery

Department of Rehabilitation Medicine

Harborview Medical Center

325 Ninth Avenue

Box 359796

Seattle, WA 98104

engrav@u.washington.edu

depts.washington.edu/uwnidrr

Principal Investigator: Loren H. Engrav, MD; Peter C. Esselman, MD

Public Contact: 206/731-3209; Fax: 206/731-3656

Project Number: H133A070047

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 07 $362,458; FY 08 $362,459

Abstract: The University of Washington Burn Model System includes one multi-site, collaborative

project, and two site-specific projects. Project 1: Psychological and Social Needs of Long Term Survivors of Major Burn Injury is a collaborative study (lead center Baltimore) to identify the needs of

persons 5 and 10 years after injury. Project 2 (Site-Specific): Expanded Delivery Model for Burn

Rehabilitation incorporates a novel intervention, an “expanded care provider”, who enables clinicians

to “reach out” to individuals with burn injury and for them to “reach in” to care providers whenever

care is needed, rather than on a rigid schedule to determine if this improves burn rehabilitation outcomes. In a randomized trial, Group 1 receives standard outpatient clinic-based rehabilitation. Group 2

has an additional care provider who uses multiple modalities to manage the multifaceted sequelae of

thermal injury. Outcomes are assessed using an individualized Goal Attainment Scale and the validated

Burn Specific Health Scale. Project 3 (Site Specific): Identification of the Pathways to Scarring utilizes

bioinformatics tools to identify gene expression pathways associated with hypertrophic scarring. In

addition, we contribute long-term follow-up data to the national database maintained at the University

of Colorado in Denver.
NIDRR Program Directory FY 2008 - Health and Function 2-49

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

University of Washington Traumatic Brain Injury Model System

University of Washington

Department of Rehabilitation Medicine

Box 356490, BB-953 Health Sciences

Seattle, WA 98195

krbell@u.washington.edu

depts.washington.edu/rehab/tbi

Principal Investigator: Kathleen R. Bell, MD

Public Contact: 206/685-0935; Fax: 206/685-3244

Project Number: H133A070032

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 07 $430,349; FY 08 $430,348

Abstract: University of Washington’s Traumatic Brain Injury Model System (UWTBIMS) provides a

comprehensive, integrated continuum of medical, surgical and rehabilitation services to persons with

acute and chronic TBI. This project conducts two site-specific projects. The first is a randomized

controlled intervention study evaluating the effect of a structured, telephone-based mentoring program

for caregivers focusing on self-management skills. This study builds upon previous experiences with

telephone counseling for both people with traumatic brain injury and multiple sclerosis. This research

is particularly important because caregivers are so crucial to the successful rehabilitation and community re-integration of persons with TBI and the literature on successful interventions for this population

is so sparse. The use of a telephone-based program allows researchers to reach those (especially in

rural regions) who lack ready access to knowledgeable advice, behavior change support, and specialty

care sufficient to maintain the health of their significant other and themselves. The second project

utilizes a large and rich database to predict a number of important long-term outcomes. The modular

project studies the natural history of headache under conditions of usual care during the first year after

TBI. This project characterizes the course and nature of headache, a common but poorly studied

consequence of TBI. It examines the impact of headache on outcome and its potential modifiers,

describes patient treatment preferences, and lays the foundation for a multi-site clinical trial.
2-50 NIDRR Program Directory FY 2008 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Alabama

UAB Model Spinal Cord Injury Care System

University of Alabama/Birmingham

Spain Rehabilitation Center

619-19th Street South SRC 529

Birmingham, AL 35249-7330

mott@uab.edu

main.uab.edu/show.asp?durki=10712

Principal Investigator: Amie B. Jackson, MD 205/934-3330

Public Contact: Pamela K. Mott, Director, Research Services 205/934-3283 (V); 205/934-4691

(TTY); Fax: 205/975-4642

Project Number: H133N060021

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $474,471; FY 07 $474,471; FY 08 $474,471

Abstract: The University of Alabama at Birmingham provides rehabilitation services specifically

designed to meet the special needs of individuals with spinal cord injury (SCI) through its

multidisciplinary, comprehensive Spinal Cord Injury Care System (UAB-SCICS). The UAB-SCICS

spans the clinical continuum from emergency services through rehabilitation and community re-entry.

The System’s research includes one collaborative research module and two in-house research projects,

all of which ultimately aim at improving the health and function of its constituents. The collaborative

research module involves the validation of an outcome measure for functional recovery. One in-house

research project involves the assessment of the predictive value of key parts of the neurological exam

for return of bladder function; the second is an investigation of the effect of nicotine on different types

of SCI pain. The project continues to benefit from the active involvement of persons with SCI in the

design and execution of the proposed activities. Project results are disseminated via a variety of accessible formats and venues for both professionals and persons with SCI and their families. A detailed

plan of operation ensures timely completion of project goals and tasks. Finally, an evaluation plan has

been designed to assess the quality and timeliness of project outcomes and dissemination, as well as

short and long term impacts of project activities. Activities of the UAB-SCICS reflect an active partnership both within the components of UAB’s health system and between UAB, the Lakeshore

Foundation, and the Birmingham VA Medical Center. The project continues as a participant in data

collection activities for the National Spinal Cord Injury Statistical Center.
NIDRR Program Directory FY 2008 - Health and Function 2-51

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Colorado

The Rocky Mountain Regional Spinal Injury System

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

susie@craighospital.org

www.craighospital.org/Research/SCIMain.asp

Principal Investigator: Daniel P. Lammertse, MD; Susan Charlifue, PhD; 303/789-8220

Public Contact: Susan Charlifue, PhD 303/789-8306 (V); 303/789-8575 (TTY); Fax: 303/789-8441

Project Number: H133N060005

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $489,000; FY 07 $489,000; FY 08 $489,000

Abstract: The Rocky Mountain Regional Spinal Injury System (RMRSIS) goals are to: (1) implement

a program of research focusing on the immediate and long-term health, function, and community

integration and participation of people with SCI; (2) improve its existing lifetime system of care for

people with SCI; and (3) continue exemplary participation in the National SCI Database. A sitespecific study determines if high vs. low tidal volumes are more effective in achieving ventilator

weaning for individuals with high level tetraplegia, using a randomized clinical trial design. A collaborative research module study involves the development of a reliable, valid measurement tool to assess

community participation. RMRSIS includes two Level I trauma centers with specialized acute

neurotrauma care facilities (St. Anthony Hospital and Swedish Medical Center) and the rehabilitation

and lifetime follow-up services of Craig Hospital.
2-52 NIDRR Program Directory FY 2008 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

District of Columbia

National Capital Spinal Cord Injury Model System

National Rehabilitation Hospital

MedStar Research Institute

102 Irving Street, NW

Washington, DC 20010

www.sci-health.org; www.ncscims.org

Principal Investigator: Suzanne L. Groah, MD 202/877-1196

Public Contact: Donal Lauderdale, MSE 202/877-1425; Fax: 202/726-7521

Project Number: H133N060028

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $449,417; FY 07 $449,417; FY 08 $449,417

Abstract: The National Capital Spinal Cord Injury Model System (NCSCIMS) serves Washington,

DC and the nation. By focusing on the frequent and costly complication of pressure ulcers (PU), the

NCSCIMS leverages two unique strengths: an existing Rehabilitation Research and Training Center

on SCI that focuses on reduction of secondary conditions, and the population of Washington, DC,

which is predominantly composed of underserved individuals. The Center includes two site-specific

and one modular project and describes a system of care that meets SCIMS priorities: Site Specific

Project 1 is a Practice-Based Evidence (PBE) project specifically focused on PU prevention for all

individuals with SCI and/or disease (SCI/D) during the acute and rehabilitative phases of care (to

evolve to the community in later phases). The PBE approach allows a detailed examination of the

effects of methods, modalities, and therapies utilized in rehabilitation to prevent PUs, which are often

based on evidence-based medicine, but in reality may not be extrapolated to the broader population

with SCI/D. In this project, researchers aim to utilize a PBE approach to augment evidence-based

practice while addressing a critical secondary complication for individuals with SCI. Site Specific

Project 2 is an SCI Navigator pilot project that combines elements of Peer Mentoring and Patient

Navigation to decrease the occurrence of PUs once the individual has returned to the community. In

this project, an SCI Navigator assists people with newly-acquired SCI in the transition from inpatient

rehabilitation to the community, within the framework of an, at times, dysfunctional healthcare system.

The NCSCIMS works with the Model System at the University of Pittsburg to explore Assistive

Technology for Mobility (ATM). In this project, researchers investigate the degree to which inadequate

wheelchair technology is the factor preventing people with SCI from doing more, work to understand

the impact of changes in wheelchair reimbursement, and fully explore the issue of disparity in ATM

prescription.
NIDRR Program Directory FY 2008 - Health and Function 2-53

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Georgia

Georgia Regional Spinal Cord Injury Care System

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road Northwest

Atlanta, GA 30309-1465

lesley_hudson@shepherd.org

www.shepherd.org

Principal Investigator: David F. Apple, Jr., MD; Lesley M. Hudson; 404/350-7353

Public Contact: Lesley M. Hudson 404/350-7591; Fax: 404/355-1826

Project Number: H133N060009

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $474,417; FY 07 $474,417; FY 08 $474,417

Abstract: The Georgia Regional Spinal Cord Injury Care System admits approximately 200 individuals annually with acute onset paralysis secondary to spinal cord injury, and collects post-discharge data

on 600 individuals each year. Its patient population comes primarily from Georgia, the rest of the

Southeast, and the Eastern Seaboard. The continuum of care begins at injury and continues through

transport, assessment, acute care, rehabilitation, emotional adjustment, community reintegration, and

lifetime follow-up. The project continues a long record of comprehensive and timely collection of data

on subjects who meet the inclusion criteria in three categories: inpatient hospitalization; longitudinal

collection at 1, 5, 10, 15, 20, and 25 years post-injury; and registry. In addition to continued model

system research, the project conducts two site specific research projects: (1) Psychological Status

During Inpatient Rehabilitation and One Year After Onset: Stress, Coping, and Expectation Hope for

Recovery; (2) Development and Validation of a Clinical Measure of Wheelchair Seat Cushion Degradation. The project also manages a collaborative data collection research module entitled Impact of SCI

on Labor Market Participation.
2-54 NIDRR Program Directory FY 2008 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Illinois

Midwest Regional Spinal Cord Injury Care System (MRSCIS)

Rehabilitation Institute of Chicago

345 East Superior Street, Room 1146

Chicago, IL 60611

www.ric.org/research/centers/MidwestRegionalSpinalCordInjuryCareSy stem/MRSCICS.aspx

Principal Investigator: David Chen, MD

Public Contact: 312/238-0764

Project Number: H133N060014

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $484,000; FY 07 $484,000; FY 08 $484,000

Abstract: The Spinal Cord Injury Rehabilitation Program at the Rehabilitation Institute of Chicago

and the Acute Spinal Cord Injury Program at Northwestern Memorial Hospital demonstrate the ongoing, comprehensive, multidisciplinary services that are provided to individuals with spinal cord injury

(SCI) which allow them to optimize their rehabilitation outcomes and enhance their ability to return to

productive, independent living in the community. In order to contribute to the improvement of outcomes for persons with SCI, the System conducts two site-specific research projects: (1) Development

of Low-Cost Devices to Increase Delivery of Intensive Treadmill Training, and (2) Disparities in

Access to and Outcomes of Rehabilitation Care for Medicare and Medicaid Beneficiaries with Spinal

Cord Injury. In addition, the project includes collaboration on one research project, Assistive Technology for Mobility (ATM) Module. MRSCICS has the capacity to enroll 140 individuals from culturally

diverse backgrounds with new spinal cord injuries annually into the Spinal Cord Injury Model Systems

database, and collect follow-up data on individuals enrolled between 1973 and 2000.
NIDRR Program Directory FY 2008 - Health and Function 2-55

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Massachusetts

The New England Regional Spinal Cord Injury Center

Boston University Medical Center Hospital

Department of Rehabilitation Medicine

Preston F-511; 732 Harrison Avenues

Boston, MA 02118-2393

jane.wierbicky@bmc.org

www.bumc.bu.edu/Dept/Content.aspx?DepartmentID=91&PageID=332

Principal Investigator: Steve Williams, MD

Public Contact: Jane Wierbicky Claudine DeJoie 617/638-7316 (Wierbicky); 617/638-7389 (DeJoie);

Fax: 617/638-7313

Project Number: H133N060024

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $464,417; FY 07 $464,417; FY 08 $464,417

Abstract: The New England Regional Spinal Cord Injury Center (NERSCIC), based at Boston

Medical Center (BMC), uses a network of rehabilitation hospitals, partners, and affiliates to develop a

regional capacity to disseminate materials in such a way that they will be utilized both by consumers

with SCI and their families, and health care professionals, with particular attention to minorities and

underserved groups. NERSCIC’s site-specific research project involves designing an improved outcome instrument in SCI research. This project applies contemporary measurement methods (CATS) to

initiate a major transformation in the outcome assessment technology used to assess activity limitation

frequently monitored in SCI research. Once the SCI-CAT has been developed using data collected

front major field study, a demonstration of the SCI-CAT evaluates its respondent burden, acceptability

to patients and clinicians, as well as its breadth, precision, sensitivity to change, and validity with

inpatients and outpatients with SCI who are receiving care from NERSCIC. Comparisons are made

between the FIM and SCI-CAT over a 6-month follow-up period. Additionally, this site-specific

project will be integrated with the NeuroQoL collaborative module, in order to expand and improve

both projects and to avoid developing competing computer adaptive testing instruments. This project is

now referred to as the QOL/SCI-CAT Combined Project. Lastly, NERSCIC is a participating site in

the SCI Collaborative Participation Module, led by Gale Whiteneck at Craig Hospital, to address the

importance of participation given the current absence of a standard acceptable measure of participation.

This collaborative SCI module identifies the best existing measure of participation or combines the best

items from existing measures of participation to form a new and improved tool with better psychometric properties validated in the SCI Model Systems to ensure broad acceptability in future SCI

outcomes research, and to allow for meaningful testing of clinical interventions.
2-56 NIDRR Program Directory FY 2008 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Michigan

University of Michigan Model Spinal Cord Injury Care System

University of Michigan

Department of Physical Medicine and Rehabilitation

300 North Ingalls, Room NI2A09

Ann Arbor, MI 48109-0491

model.sci@umich.edu

www.med.umich.edu/pmr/modelsci/index.htm

Principal Investigator: Denise G. Tate, PhD

Public Contact: Martin Forchheimer, MPP, Project Manager 734/763-0971; Fax: 734/936-5492

Project Number: H133N060032

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $457,417; FY 07 $457,417; FY 08 $457,417

Abstract: The overall purpose of this project is to provide comprehensive rehabilitation and community participation services and to generate new knowledge through research, development, and demonstration designed to improve outcomes for persons with spinal cord injury (SCI). A site-specific research study is conducted in partnership with faculty from the University of Michigan Depression

Center, Department of Psychiatry, and the Molecular and Behavioral Neurosciences Institute. This

study is a randomized clinical trial study designed to evaluate the efficacy of a pharmacological agent,

Venlafaxine HCI also known as Effexor XR, as a preventive agent for reducing depression among

persons with SCI. This clinical trial addresses a major need in the field as there are no randomized

clinical trials currently available on the effectiveness of antidepressants in persons with SCI. In this

study, the drug’s effects on pain are also assessed. An outcome of this study is the formulation of

recommendations for antidepressant medication use in SCI and implications for clinical practice

guidelines. The project continues to operate an efficient data collection system, facilitating research and

contributions to the National SCI Database.
NIDRR Program Directory FY 2008 - Health and Function 2-57

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

New Jersey

Northern New Jersey Spinal Cord Injury System

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052-1499

dtulsky@kmrrec.org

www.kmrrec.org/KM/nnjscis

Principal Investigator: David S. Tulsky, PhD

Public Contact: 973/243-6849; 973/243-6916; Fax: 973/243-3527

Project Number: H133N060022

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $457,417; FY 07 $457,417; FY 08 $457,417

Abstract: The Northern New Jersey Spinal Cord Injury System (NNJSCIS) provides a comprehensive continuum of state-of-the-art care for persons with spinal cord injury (SCI) and their significant

others from time of injury through long-term follow-up in the community and conducts spinal cord

research, including clinical research and the analysis of standardized data. NNJSCIS conducts both a

site-specific research study and a collaborative module. These studies contribute to evidence-based

rehabilitation interventions and clinical and practice guidelines that improve the lives of individuals

with SCI and consist of the following: An innovative rehabilitation intervention utilizing technology to

prevent respiratory disease in persons with SCI, now the leading cause of death and the third leading

cause of hospitalizations in this population; a collaborative module that adapts, develops, and validates

an innovative and promising outcome system for use in SCI intervention research; and the NNJSCIS

coordinates with the NIDRR-funded Model Systems Knowledge Translation Center to provide scientific results and information for dissemination to clinical and consumer audiences. This project is a

cooperative effort of the Kessler Medical Rehabilitation Research and Education Corporation

(KMRREC), the Kessler Institute for Rehabilitation (KIR), the University of Medicine and Dentistry

of New Jersey - The New Jersey Medical School (UMDNJ-NJMS), and UMDNJ-University Hospital.
2-58 NIDRR Program Directory FY 2008 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

New York

Mount Sinai Spinal Cord Injury Model System

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

One Gustave L. Levy Place, Box 1240

New York, NY 10029-6574

marcel.dijkers@mssm.edu

www.mssm.edu/rehab/spinal

Principal Investigator: Kristian T. Ragnarsson, MD

Public Contact: Marcel Dijkers, PhD 212/659-8587; Fax: 212/348-5901

Project Number: H133N060027

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $452,541; FY 07 $452,541; FY 08 $452,541

Abstract: The purpose of the Mount Sinai Spinal Cord Injury Model System (MS-SCI-MS) is to (1)

demonstrate and evaluate a multidisciplinary system of rehabilitation care for persons with spinal cord

injury (SCI) in the New York City metropolitan area, including innovative programs for community

integration; (2) contribute longitudinal data to the SCI National Database; (3) create and evaluate SCI

quality of life assessment and participation assessment measures, and collect information on the labor

force and economic impacts of SCI; and (4) evaluate the treatment of neuropathic pain using modifiedrelease morphine. There are three major components of the MS-SCI-MS: (1) comprehensive clinical

care, (2) research (site-specific, module projects and contributions to the national database); and (3)

dissemination, education, and training. The comprehensive clinical program consists of the following

components: (1) The NYC Emergency Medical Service (NYC-EMS), which ensures the early and

safe extrication of individuals with SCI from the site of injury; (2) acute medical/surgical care at

Elmhurst Hospital Center or at Mount Sinai Hospital (MSH), both of which provide state-of-the-art

emergency and medical/surgical services; and (3) comprehensive inpatient medical rehabilitation

services on the 25-bed, CARF-accredited SCI inpatient rehabilitation unit of MSH. The program

stresses interdisciplinary care, and employs a primary team model to enhance coordination among

caregivers. The research program of MS-SCI-MS is designed to advance the understanding of SCI and

its consequences, and to develop better methods of treatment of secondary conditions of SCI, especially pain. The site-specific project studies modified-release formulation of morphine sulfate for

neuropathic pain after SCI through a randomized, double-blind crossover trial of modified-release

morphine and placebo for patients with uncontrolled neuropathic pain of three types. In addition, three

module projects are executed in collaboration with SCI model systems elsewhere. Dissemination,

education, and training for individuals with SCI, their families, students, and health professionals,

constitute the third component of the MS-SCI-MS, and include publications in scientific journals,

presentations at national and local meetings, publication of a newsletter for consumers, expanded webbased information, a variety of educational and training programs, including an SCI medicine fellowship, and training of physical medicine and rehabilitation residents from various residency programs.
NIDRR Program Directory FY 2008 - Health and Function 2-59

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Ohio

Northeast Ohio Regional Spinal Cord Injury System

MetroHealth System

Department of Physical Medicine and Rehabilitation

2500 MetroHealth Drive

Cleveland, OH 44109

mroach@metrohealth.org

rehab.metrohealth.org/norscis

Principal Investigator: Gregory A. Nemunaitis, MD 216/778-5514

Public Contact: Mary Jo Roach 216/778-8781; Fax: 216/778-8782

Project Number: H133N060017

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $449,417; FY 07 $449,417; FY 08 $449,417

Abstract: The Northeast Ohio Regional Spinal Cord Injury System (NORSCIS) at MetroHealth

Rehabilitation Institute of Ohio in collaboration with Case Western Reserve University and the Cleveland FES Center conducts research to further develop the effectiveness of an innovative Model Spinal

Cord Injury Care System and to demonstrate how the application of advanced assistive technology can

benefit persons with disabilities. Efficiency and effectiveness of care (and research potential) are

enhanced as all components of the continuum of care (from trauma/emergency care to acute medical/

surgical treatment, inpatient and outpatient rehabilitation, and community support services) are all

available on the NORSCIS campus. A site-specific project studies advances in functional electrical

stimulation (FES) technology to document improvements in function, health, and wellness. An innovative focus on trunk muscle stimulation targets specific clinical problems, including seated stability and

mobility, reachable workspace, and pulmonary function. A collaborative research project with UPMCSCI, is directed at testing and collecting the data needed to understand the impact of coverage changes

and to fully explore the issue of disparity in assistive technology for mobility prescription. A collaborative project with Craig Hospital involves the development of a reliable, valid measurement tool to

assess community participation. The goal of these hypothesis-driven research and demonstration

projects is to develop and measure the effectiveness of new intervention strategies at both the individual patient level and overall systems of care for persons with spinal cord injury.
2-60 NIDRR Program Directory FY 2008 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Pennsylvania

Regional Spinal Cord Injury Center of the Delaware Valley

Thomas Jefferson University

Regional Spinal Cord Injury Center of the Delaware Valley

132 South 10th Street

375 Main Building

Philadelphia, PA 19107-5244

mary.patrick@jefferson.edu

www.spinalcordcenter.org

Principal Investigator: Ralph Marino, MD

Public Contact: Mary Patrick 215/955-6579; Fax: 215/955-5152

Project Number: H133N060011

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $464,417; FY 07 $464,417; FY 08 $464,417

Abstract: The Regional Spinal Cord Injury Center of the Delaware Valley (RSCICDV) provides and

evaluates a comprehensive program of coordinated patient care, education, and research activities for

individuals who have sustained a traumatic spinal cord injury (SCI). Clinical activities are directed at

promoting evidence-based practice to improve outcomes and reduce medical complications in persons

with SCI. Research activities are designed to develop and validate upper and lower extremity outcome

measures for use in clinical trials. Specifically, RSCICDV: (1) contributes to the National Database by

enrolling an estimated 50 new subjects per year into the database and by collecting follow-up data on

previously enrolled subjects; (2) conducts an on-site research project whose focus is to develop and

validate the Capabilities of Arm and Hand in Tetraplegia (CAHT), an objective test of arm and hand

functional capabilities needed to conduct clinical trials for neurological recovery in SCI; (3) participates

in a collaborative module on evaluating an automated phone follow-up system for people with SCI; (4)

participates in a collaborative module on validation of an outcome measure for motor recovery in

incomplete SCI; and (5) develops educational resources for patients, healthcare providers, and researchers.
NIDRR Program Directory FY 2008 - Health and Function 2-61

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Pennsylvania

University of Pittsburgh Model Center on Spinal Cord Injury

University of Pittsburgh

2310 Jane Street Suite 1207

Pittsburgh, PA 15203

greekk@upmc.edu

www.upmc-sci.org

www.rehabmedicine.pitt.edu

Principal Investigator: Michael L. Boninger, MD 412/365-4861

Public Contact: Karen Greenwald, RN 412/586-6941; Fax: 412/381-3956

Project Number: H133N060019

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $449,417; FY 07 $449,417; FY 08 $449,417

Abstract: The UPMC-SCI continues its research focus on assistive technology (AT) for mobility. Pilot

data collected during the previous funding cycle highlighted disparity in wheelchair prescription.

Individuals from minority groups and people with low socioeconomic status received less and lower

quality equipment. So that interventions can be developed, the project continues and expands this

research to delve into the reasons for disparity. In addition, it investigates the impact of recent Centers

for Medicare and Medicaid Services (CMS) changes for AT reimbursement. These changes will likely

have a critical impact on the AT provided to individuals with spinal cord injury (SCI). Finally, the

project develops a tool to determine how far, how fast, and when people travel in their wheelchairs.

This data is related to the type of wheelchairs used, to the number of wheelchair failures, and to measures of participation. From these findings, researchers determine how the wheelchair prescribed

impacts participation, and if greater use leads to greater failures. This data can be used to push for

improvements in manufacturing and changes in coverage. UPMC-SCI also conducts a randomized,

controlled trial to determine if following the Consortium of Spinal Cord Injury Medicine Guidelines on

Upper Limb Preservation leads to decreased pain. These guidelines are applied to acutely injured

patients who are followed for the first six months after injury. Validation of the guidelines’ effectiveness helps assure that they become the standard of care across the country. SCI care at the University

of Pittsburgh is provided in a multidisciplinary manner with a high level of communication among the

constituent services. The project has fully implemented a system of continuity of treatment that begins

with the emergency response at the scene of injury and continues with comprehensive treatment and

rehabilitation from medical/surgical to acute stage rehabilitation through utilization of assistive technology services and vocational rehabilitation. UPMC-SCI continues to enroll and collect long-term

follow-up data on SCI subjects for the National Spinal Cord Injury Statistical Center.
2-62 NIDRR Program Directory FY 2008 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Texas

Texas Model Spinal Cord Injury System

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Street

Houston, TX 77030-3408

dgraves@bcm.tmc.edu

www.texasmscis.org

Principal Investigator: Daniel Graves, PhD; William Donovan, MD; 713/797-5023

Public Contact: Daniel Graves, PhD 713/797-5946 (V); 713/797-5790 (TTY); Fax: 713/797-5982

Project Number: H133N060003

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $464,417; FY 07 $464,417; FY 08 $464,417

Abstract: The Texas Model Spinal Cord Injury System (TMSCIS) provides services along the entire

continuum of care from emergency medical service to long-term follow-up and management of secondary conditions. The TMSCIS includes a site-specific research project that is designed to provide

high level evidence of the efficacy of a novel treatment to prevent bladder complications. The project is

a randomized, double-blind, placebo controlled, parallel groups investigation of the effects of Botulinum toxin A treatment of detrusor external sphincter dyssynergia (DESD) during early spinal cord

injury. Many patients with SCI develop neurogenic bladder dysfunction associated with detrusor

hyperreflexia and DESD that can lead to long-term complications in up to 50 percent of patients.

These complications include hydronephrosis, vesicoureteral reflux, nephrolithiasis, sepsis, renal insufficiency or failure, and even death. This investigation is intended to determine if the prevention of

DESD in the early phase of recovery can prevent some of these complications. In addition, the

TMSCIS includes a module designed to develop an outcome measure of trunk and postural control to

be utilized in activity-based therapy programs like locomotor training. The outcomes of large scale

clinical trials of locomotor training highlight the need for outcome measures that are designed to

capture changes brought about by translational research that may not have been necessary for more

traditional therapy programs. This scale development project incorporates item response theory methods as well as reliability and validity investigations in a minimum of four model systems.
NIDRR Program Directory FY 2008 - Health and Function 2-63

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Washington

Northwest Regional Spinal Cord Injury System

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98195-6490

scirehab@u.washington.edu

sci.washington.edu

Principal Investigator: Charles H. Bombardier, PhD 206/731-3665

Public Contact: Cynthia Salzman, MHA 206/685-3999; Fax: 206/685-3244

Project Number: H133N060033

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $464,417; FY 07 $464,417; FY 08 $464,417

Abstract: The University of Washington’s Northwest Regional Spinal Cord Injury System

(NWRSCIS) serves a critical mass of patients with spinal cord injury (SCI) and has all the necessary

disciplines to provide state-of-the-art medical, surgical, and rehabilitation care. One site-specific project

is a randomized controlled intervention study evaluating the effect of proactive, structured, telephonebased counseling and care management on rehospitalization rate and quality of life during the first year

after discharge from acute rehabilitation. This study builds upon successful experiences with telephone

counseling for both people with traumatic brain injury and multiple sclerosis. This research is particularly important because the lifestyle changes and health care behaviors required for successful living

after SCI are tremendously challenging, rates of rehospitalization are high, and many people (especially in rural regions) lack ready access to knowledgeable advice, behavior change support, and

specialty care sufficient to maintain their health. A modular project studies the natural history of major

depression under conditions of usual care during the first year after SCI. This project establishes

reliable and valid means of screening and diagnosing major depression soon after SCI. It examines the

impact of depression on rehabilitation efficiency and compares the effect of standard treatment to

clinical practice guideline level care of depression. This study describes depression treatment preferences among people with SCI and lays the foundation for a multi-site clinical trial. The NWRSCIS

also includes a collaborative, multisite, randomized, double-blind, placebo controlled trial of

venlafaxine XR (Effexor XR) in adults with SCI and major depressive disorder (MDD). The purpose

of the study is to examine the efficacy and tolerability of venlafaxine XR as a treatment for MDD.

NWRSCIS contributes to the national statistics database at the University of Alabama at Birmingham.
2-64 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Alabama

Constraint-Induced Movement Therapy Modified for Rehabilitating

Arm Function in Stroke Survivors with Plegic Hands

University of Alabama

1530 Third Avenue, South, CPM 712

Birmingham, AL 35294-0018

guswatte@uab.edu

Principal Investigator: Gitendra Uswatte, PhD 205/975-5089

Public Contact: Gitendra Uswatte 205/934-2471; Fax: 205/975-6140

Project Number: H133G050222

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 05 $149,891; FY 06 $149,954; FY 07 $149,954; FY 08 (No-cost extension

through 9/30/2009)

Abstract: Based on positive findings from a pilot study, this project conducts a randomized, controlled

clinical trial to rigorously test the efficacy of a modification of Constraint-Induced Movement (CI)

therapy for rehabilitating arm function in chronic stroke patients with severe upper-extremity impairment. CI therapy is a rehabilitation method that has been shown in controlled studies to produce large

improvements in real-world upper-extremity use in individuals with chronic stroke. Up until now,

survivors of stroke with plegic hands have been excluded from CI therapy protocols, whether on a

research or clinical basis. In the modified therapy, participants receive CI therapy, combined with other

treatment modalities, for six hours per day. The treatment package includes tone management/movement facilitation, training of more-impaired arm use using shaping, functional task practice, restraint of

the less-impaired arm in the laboratory and at home, and a package of behavioral methods for transferring gains from the laboratory to the home situation. Participants are also introduced to assistive and

orthotic devices that might facilitate use of their more-impaired arm in their daily life.
NIDRR Program Directory FY 2008 - Health and Function 2-65

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

A New Measure of Subjective Fatigue in Persons with Traumatic Brain

Injury

Santa Clara Valley Medical Center (SCVMC)

Rehabilitation Research Center

751 South Bascom Avenue

San Jose, CA 95128

Principal Investigator: Tamara Bushnik, PhD 408/793-6446

Public Contact: Jerry Wright 408/793-6433; Fax: 408/793-6434

Project Number: H133G080168

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $182,918

Abstract: This research project addresses the lack of evidence supporting a specific fatigue scale, of

the over 30 that have been used for clinical and/or research purposes, which is psychometrically sound,

efficient, and useful in individuals with TBI to assess treatment interventions and the natural history of

fatigue following TBI. The primary objective of the project is to evaluate the internal consistency,

concurrent validity, and item/scale structure of a fatigue item pool and to identify the most psychometrically sound measure of fatigue in individuals post-TBI. To accomplish this goal, SCVMC has

partnered with the Rehabilitation Institute of Michigan (RIM), a TBI Model System from 1987-2007

and a contracted center to continue TBI National Database follow-up. SCVMC and RIM have the

largest number of cases eligible for follow-up in the TBI National Database. The short-term outcome is

to advance knowledge about the measurement of fatigue in individuals with TBI through creation of a

psychometrically valid and useful fatigue assessment measure for individuals with TBI. The intermediate outcome is that availability of the new scale will lead to improved studies and treatment plans for

individuals with TBI who have fatigue.
2-66 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Evaluating Dysphagia in Individuals with Spinal Cord Injury:

Assessing Incidence, Associated Factors, and Preventable

Complications

Santa Clara Valley Medical Center (SCVMC)

751 South Bascom Avenue

San Jose, CA 95128

Principal Investigator: Kazuko Shem, MD 408/885-7007

Public Contact: Tamara Bushnik, PhD 408/793-6433; Fax: 408/885-2028

Project Number: H133G080165

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 08 $189,382

Abstract: Dysphagia is known to occur in a significant number of individuals with spinal cord injury

(SCI) presenting to acute care immediately after the injury and to inpatient rehabilitation. However, the

exact incidence of dysphagia in this population has not been studied prospectively. The primary

objective of this study is to determine the incidence of dysphagia using bedside swallow evaluation

(BSE) and videofluoroscopy swallow study (VFSS) and to determine associated risk factors in individuals with SCI. The secondary objective is to determine if the BSE is an effective screening tool as

compared with the VFSS for individuals with SCI and to determine the sensitivity and specificity of

BSE in individuals with SCI. The third objective is to document the time course for the resolution of

dysphagia post-SCI. To address this research question, individuals with SCI who are positive for

dysphagia following either a BSE or VFSS are administered serial BSE and VFSS until resolution of

dysphagia or discharge from the rehabilitation center.
NIDRR Program Directory FY 2008 - Health and Function 2-67

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Florida

Investigating the Effects of Snoezelen in Children Recovering from

Severe Brain Injury

University of Miami

Miller School of Medicine

1611 NW Twelfth Avenue, RTC-215

Miami, FL 33136-1094

ghotz@med.miami.edu

Principal Investigator: Gillian A. Hotz, PhD

Public Contact: 305/243-4004; Fax: 305/243-4006

Project Number: H133G070119

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 07 $197,907; FY 08 $196,697

Abstract: This research study examines a novel therapeutic approach referred to as Snoezelen or

controlled multisensory therapy for children with severe traumatic brain injury (TBI). The Snoezelen

approach is based on a theoretical framework of using a controlled multisensory environment which

promotes stimulation of the primary senses which include auditory, visual, olfactory, tactile, and

gustatory systems which are impaired in the early stages of recovery. There is evidence that Snoezelen

has been shown to find a balance between relaxation and activity or changing arousal within the

framework of a safe, controlled, adapted environment. The purpose of this study is to investigate the

effects of Snoezelen therapy on physiological, cognitive, and behavioral changes in children recovering from severe TBI. Seventy-two subjects from 5-18 years of age recovering from severe TBI are

studied in a prospective randomized controlled trial. The treatment group that receives up to 20

Snoezelen treatment sessions is compared to a control group that receives up to 20 playroom sessions,

with both groups receiving a standard comprehensive neurorehabilitation program in an inpatient

pediatric rehabilitation unit. Specific physiological, cognitive, and behavioral outcome measures are

collected and evaluated at baseline, and pre- and post-Snoezelen and playroom treatment sessions.
2-68 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Florida

Exercise Treatment of Obesity-Related Secondary Conditions in Adults

with Paraplegia

University of Miami

Miller School of Medicine

1095 Northwest 14th (R48)

Miami, FL 33136

Principal Investigator: Mark S. Nash, PhD 305/243-3628

Public Contact: Fax: 305/243-3913

Project Number: H133G080150

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $199,738

Abstract: This project investigates the effects of physical activity with or without a nutrient supplement known to increase body lean mass on adults with chronic paraplegia who are at risk for clusters

of obesity and obesity-related secondary complications. Qualified subjects perform six months of

circuit resistance training with half of the participants randomized to receive a whey protein supplement immediately before and immediately after each training session. The immediate post-exercise

administration of whey protein is reported to increase body lean (muscle) mass, whose loss after SCI is

thought to decrease fat utilization and hasten body fat accretion. Outcomes measured include: (1) the

effects of training and supplement on cardiopulmonary endurance and strength, a global disease risk

score, health related quality of life as assessed by the SF-36 instrument validated for use in persons

with SCI; and (2) participant perceptions of exercise benefits studied before and after training by a

scientist-stakeholder with SCI. Data examining the personal and societal barriers to exercise participation after SCI is collected through a web-based form. This project improves the understanding of risks

for obesity and obesity-related secondary complications. The results are analyzed and will improve the

understanding of risks for obesity and obesity-related secondary complications.
NIDRR Program Directory FY 2008 - Health and Function 2-69

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

Biopsychosocial Factors that Predict TBI Post-Acute Rehabilitation

Outcomes

Shepherd Center

2020 Peachtree Road, NW

Atlanta, GA 30309-1465

ron_seel@shepherd.org

Principal Investigator: Ronald T. Seel, PhD

Public Contact: 404/367-1240

Project Number: H133G070171

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 07 $192,500; FY 08 $194,973

Abstract: This project develops models using biopsychosocial factors assessed during the initial days

of traumatic brain injury (TBI) post-acute rehabilitation to predict good, fair, and poor post-acute

rehabilitation discharge outcomes. Empirically derived biopsychosocial models improve understanding

of TBI recovery, identify patients at risk for poor outcomes, inform individualized treatment planning,

and increase the overall efficiency and efficacy of post-acute rehabilitation services. Clinical measures

of motor and cognitive functioning are analyzed, and five experimental measures are administered to

assess potential psychosocial and environmental risk factors for clients with TBI. The primary goals

are to produce probabilistic and tree-based models of biopsychosocial factors that predict good, fair, or

poor TBI post-acute rehabilitation outcomes with regard to: (1) physical and cognitive improvement;

(2) independent living (no supervision required); and (3) community participation. Primary dissemination efforts include at least two peer-reviewed manuscripts that describe predictive models for clinical

use, and development of an automated post-acute rehabilitation admission assessment protocol, made

available for downloading from the Shepherd Center website. The long-term goal is to design and test

interventions for treatable predictors of post-acute rehabilitation outcomes and establish evidence-based

guidelines.
2-70 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

Evaluating the Effects of Activity-Based Therapy for Individuals with

Chronic Spinal Cord Injury

Shepherd Center, Inc.

2020 Peachtree Road Northwest

Atlanta, GA 30309

Principal Investigator: Michael L. Jones, PhD 404/350-7595

Public Contact: 404/350-7595; Fax: 404/350-7596

Project Number: H133G080031

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 08 $200,000

Abstract: This project evaluates the effects of an activity-based therapeutic exercise program for

individuals with chronic spinal cord injury (SCI) using Beyond Therapy—a program of state-of-the-art

therapeutic exercise technology. Project goals include: (1) completing a randomized, experimentalcontrol group comparison examining the effects of participation in activity-based therapy on neurological functioning, independence in activities of daily living, and community participation; (2) conducting

further between-group and within-subject analyses to determine variations in outcomes as a function of

level of injury and ASIA classification; (3) identifying factors associated with continued compliance

with a self-directed maintenance program designed to sustain any gains in neurological functioning

achieved from participation in activity-based therapy; and (4) examining the relationship between level

of compliance with the maintenance program and preservation of gains achieved over a 12-month

period. Research results are used to develop activity-based exercises for individuals with SCI that can

be implemented in community-based fitness centers. Additionally, the project develops a training and

technical assistance program to assist community fitness centers in implementing activity-based therapy

programs.
NIDRR Program Directory FY 2008 - Health and Function 2-71

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Enhanced Motor Recovery Using Serotonergic Agents

Rehabilitation Institute of Chicago

345 East Superior Street, Suite 1406

Chicago, IL 60611-4496

g-hornby@northwestern.edu

Principal Investigator: T. George Hornby, PhD, PT

Public Contact: 312/238-1397

Project Number: H133G060124

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 06 $142,710; FY 07 $146,280; FY 08 $145,648

Abstract: The purpose of this project is to identify changes in voluntary and reflex behaviors, with an

emphasis on walking ability, in individuals with stroke following specific pharmacological and physical interventions, with the potential to optimize walking recovery during intensive rehabilitation. This

project focuses on improving independent walking ability in individuals with chronic hemiparesis poststroke. A substantial body of literature demonstrates the effectiveness of body-weight supported

treadmill training post-stroke, although the improvements in walking ability may be limited. The

project’s goal is to enhance the benefits of training by increasing neural excitability and potential

plasticity by application of serotonergic agents. The approach has two objectives: (1) demonstrate that

serotonergic agents can modulate reflex and voluntary motor activity with acute and chronic selective

serotonin reuptake inhibitors administration, and (2) accelerate motor performance and walking recovery using combined pharmacological and physical interventions as opposed to either intervention

alone.
2-72 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Rehabilitation of Reaching in Chronic Stroke Using an Anti-Gravity

Force Field

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1406

Chicago, IL 60611

r-beer@northwestern.edu

Principal Investigator: Randall F. Beer, PhD 312/238-1556

Public Contact: Deborah Znajda 312/238-3381; Fax: 312/238-2208

Project Number: H133G060169

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 06 $149,926; FY 07 $146,179; FY 08 $149,917

Abstract: The major goal of this project is to develop, implement, and evaluate a novel robot-mediated

therapy to allow stroke survivors to perform reaching movements while gradually integrating the

control of posture and movement. The specific aims of this project are: (1) to characterize deficits in

reaching as a function of movement direction, external load, and limb orientation with respect to

gravity; (2) to investigate potential mechanisms underlying external load effects on reaching kinematics; and (3) to demonstrate the efficacy of a robot-mediated “anti-gravity” force field to rehabilitate

reaching in a group of chronic stroke survivors with moderate or severe impairment. Thirty chronic

stroke survivors, matched for initial impairment level, are assigned to either Force Field or Free Reaching protocols. The Force Field group trains movements on the Multi-Axial Cartesian-based Arm

Rehabilitation Machine (MACARM). The MACARM is used to implement an elastic virtual table that

provides subject-specific partial support of the limb against gravity. The Free Reaching group practices

unassisted reaching movements. Both groups train three times weekly for eight weeks, with the goal of

increasing reaching extent. Therapeutic efficacy is determined based on pre/post comparisons of the

outcome measures provided by Aim 1 and clinical measures of motor function, functional independence, and quality of life. Researchers also evaluate the transfer of training effects to untrained movement directions, load conditions, or limb orientations.
NIDRR Program Directory FY 2008 - Health and Function 2-73

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Augmenting Language Therapy for Aphasia: A Randomized DoubleBlind Placebo-Controlled Trial of Levodopa in Combination with

Speech-Language Therapy

Rehabilitation Institute Research Corporation

Center for Aphasia Research

345 East Superior Street, Room 1353A

Chicago, IL 60611

lcherney@ric.org

Principal Investigator: Leora R. Cherney, PhD

Public Contact: 312/238-1117; Fax: 312/238-2208

Project Number: H133G070074

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 07 $199,843; FY 08 $199,772

Abstract: This randomized, double-blind, placebo controlled clinical trial evaluates the effect of the

pharmacologic agent, levodopa, in combination with speech-language treatment, on the language

outcome of patients with chronic, nonfluent aphasia. There is preliminary evidence that increased

levels of dopamine, in combination with language treatment, may improve the language deficits of

aphasia following stroke. Most studies have investigated the adjunctive effects of bromocriptine, a

dopamine agonist that acts on post-synaptic dopamine receptors, changing the tonic state of dopamine

neurons. However, new evidence is suggesting that levodopa, a precursor to dopamine, may be preferred since it has the potential to increase the presynaptic availability of dopamine, thereby enhancing

phasic dopamine signals which are important for learning enhancement. Accordingly, the specific aims

of this clinical trial are to assess whether: (1) levodopa in combination with speech-language therapy

improves language performance; (2) levodopa in combination with speech-language therapy improves

language performance more than speech-language therapy alone; and (3) improvements in language

performance resulting from combined levodopa and speech language therapy are maintained over time

to a greater extent than improvements resulting from speech-language therapy alone. The intervention,

which serves as the behavioral treatment platform on which to assess the adjunctive effects of

levodopa, is administered via computer and involves repeated choral reading of sentences. Subjects

receive five hours of the speech-language therapy intervention weekly plus the levodopa or placebo for

six weeks. The primary outcome measure is the change in the Aphasia Quotient (AQ) score on the

Western Aphasia Battery from pre- treatment to post-treatment. Other language, cognitive, and communication measures are collected pre- and post-treatment and at six weeks after completion of treatment.
2-74 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Effectiveness of a Teleconference Fatigue Management Program for

People with Multiple Sclerosis

University of Illinois at Chicago

Department of Occupational Therapy

1919 West Taylor Street, MC 811

Chicago, IL 60304

marciaf@uic.edu

Principal Investigator: Marcia Finlayson, PhD

Public Contact: 312/996-4603; Fax: 312/413-0256

Project Number: H133G070006

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 07 $143,836; FY 08 $142,688

Abstract: This project tests the effectiveness and efficacy of a teleconference energy conservation

education program for people with multiple sclerosis (MS). The project is guided by self-efficacy

theory and builds on existing pilot work. The program is delivered by teleconference by a licensed

occupational therapist. Participants are provided with a telephone and headset, and a program manual.

On the designated days, participants call a toll-free phone number and participate in an educational

group session facilitated by the therapist. A total of six one-hour weekly sessions use the program

materials developed through the pilot study. Measures of the primary and secondary outcomes are

administered over the telephone by a research assistant before and after the program, at three months,

and at six months. By collecting data at these points and having a wait-list control group, the project is

able to test whether: (1) individuals in the immediate intervention group achieve better outcomes than

individuals in the wait-list control group; (2) the program leads to significant reductions in fatigue

impact and fatigue severity, and improved quality of life; and (3) improvements in the outcomes can be

maintained over six months. Analyses involve t-tests and mixed effects regression models. The primary

goals of the project are to reduce the impact of fatigue on participants’ everyday lives, reduce fatigue

severity, and improve quality of life. Secondary goals are to increase self-efficacy for managing fatigue

and increase the number of energy conservation strategies used.
NIDRR Program Directory FY 2008 - Health and Function 2-75

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

A Randomized Trial of Realignment Therapy for Treatment of Medial

Knee Osteoarthritis

Boston University

Clinical Epidemiology and Research Training Unit

715 Albany Street, Room A203

Boston, MA 02118

djhunter@bu.edu

Principal Investigator: David J. Hunter, MD, PhD

Public Contact: 617/638-5180; Fax: 617/638-5239

Project Number: H133G040201

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000; FY 07 (No-cost extension

through 4/30/2008); FY 08 (No-cost extension through 12/31/2008)

Abstract: The overall objective of this project is to determine whether the provision of realignment

therapy in patients with medial knee osteoarthritis (OA) relieves knee pain and improves function. The

project tests the hypothesis that compared to control treatment, the use of realignment therapy (valgus

knee brace + motion control shoes + orthosis) is effective in medial knee OA. The specific aims are:

(1) To undertake a 24-week randomized crossover clinical trial in patients with medial knee osteoarthritis to determine whether provision of realignment therapy leads to lower pain scores and improved

function during the time of this treatment than during the use of a placebo treatment; (2) to perform an

open label follow-up study to track use and effectiveness of treatment. This project is co-funded by

DonJoy, a knee bracing company.
2-76 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Sensorimotor Training and Assessment in Adults with Hemiplegic

Cerebral Palsy: The ULTrA Program

University of Michigan

Division of Kinesiology

401 Washtenaw

Ann Arbor, MI 48109-2214

shcb@umich.edu

www.motorcontrol.umich.edu/ultra

Principal Investigator: Susan H. Brown, PhD

Public Contact: 734/763-6755; Fax: 734/936-1925

Project Number: H133G050151

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 05 $148,810; FY 06 $148,221; FY 07 $149,933; FY 08 (No-cost extension

through 11/30/2009)

Abstract: This project implements a eight-week upper limb training and assessment program (ULTrA.

Program) for adults with hemiplegic cerebral palsy (CP), a growing yet neglected segment of the CP

community. This program is home-based but linked to the research laboratory through the Internet.

Prior to and following clinical intervention, a quantitative assessment of upper limb and hand sensorimotor function is made using established motor control techniques. Each participant receives a

computer-based upper limb training unit, including high speed Internet connectivity and a training CD.

A 40-minute, tailored intervention program is performed five days per week. During three of these

training sessions, a student coach assists participants via webcam. During the coaching sessions,

movement time and grasp force data are recorded and uploaded to a central website which also serves

as a resource for consumers and researchers in the area of mobility in CP across the lifespan. Training

in this intervention leads to improved sensorimotor function of the affected limb and improved bilateral

coordination in adults with hemiplegic CP. This Internet-based program, which utilizes virtual coaches,

facilitates adherence to the training program and thus maximizes the benefit of the intervention.
NIDRR Program Directory FY 2008 - Health and Function 2-77

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Adapted Assessment of Speed of Information Processing in Children

with Cerebral Palsy

University of Michigan

Department of Physical Medicine and Rehabilitation

325 East Eisenhower, Suite 100

Ann Arbor, MI 48108

sethaw@umich.edu

www.med.umich.edu/pmr/acal/speed.htm

Principal Investigator: Seth A. Warschausky, PhD

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133G070044

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 07 $199,995; FY 08 $199,996

Abstract: This project develops an accessible assessment of processing speed that allows sensitive

measurements of cognitive capabilities in children with severe motor and communicative impairments.

The objective is to examine processing speed in children with cerebral palsy by utilizing inspection

time as a measure of speed of visualization. Specific aims are: (1) to examine psychometric properties,

including reliability, concurrent validity, and criterion-related validity of a modified inspection time

task, and (2) to compare the inspection time profiles within and between groups using the traditional

and modified inspection time task procedures. Processing speed is associated with development of

critical cognitive functions including working memory and fluid intelligence, and is sensitive to brain

dysfunction, medication effects, and aging.
2-78 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Pathways to Depression: An Examination of Vulnerability and Stress in

Adults with Spinal Cord Injury

University of Michigan

Department of Physical Medicine and Rehabilitation

300 North Ingalls, Room NI2A09

Ann Arbor, MI 48109-0491

Principal Investigator: Claire Kalpakjian, PhD

Public Contact: 734/763-0971; Fax: 734/936-5492

Project Number: H133G070020

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 07 $199,999; FY 08 $199,913

Abstract: This project presents and tests a model (Pathways to Depression after Spinal Cord Injury

[SCI]) of vulnerability factors interacting with current stressors (stressful life events and poor social

support) to increase risk of depression and its adverse effects on community participation in adults with

SCI. Depression after SCI is one of the most pervasive psychological conditions, occurring at rates

exceeding the general population, and has the potential to substantially limit independence, compromise health and well-being, and increase risk for suicide. While many studies in the extant literature

have examined injury and situational factors as correlates of depression, very few have examined other

vulnerability factors that precede injury placing certain individuals at higher risk for depression postinjury. A deeper understanding of factors that predispose some individuals to depression after injury

can inform treatment approaches and improve community participation impeded by depression. Using

a cross sectional design and survey methodology (written and telephone interview), the project surveys

400 individuals with SCI about early life experience, psychological and substance abuse history (prior

to injury), current stressful life events and social support, depression, and community participation.

DNA samples are also collected to test for a polymorphism of the serotonin transporter known to

interact with stress to increase risk of depression. Structural equation modeling is used to test the

Pathways model of vulnerability factors.
NIDRR Program Directory FY 2008 - Health and Function 2-79

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Neuroanatomical Correlates of Positive Psychology Among People with

Traumatic Brain Injury: A Biopsychosocial Model

Wayne State University

Department of Physical Medicine and Rehabilitation

261 Mack Avenue, Suite 546

Detroit, MI 48201

Principal Investigator: Robin A. Hanks, PhD

Public Contact: 313/745-9763; Fax: 313/966-7682

Project Number: H133G080064

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $199,078

Abstract: This project investigates the complex relationships among strengths of character, structurally-imaged estimates of white matter damage in frontal brain regions, psychological resiliency, and

outcomes including satisfaction with life and community integration among people with TBI. Additionally, this project investigates the extent to which Peterson and Seligman’s Character Strengths

model of recovery from physical illness and trauma holds true for people recovering from TBI during

the acute transition phase of adjustment to disability. The psychosocial, cognitive, and physical characteristics which may influence these relationships are also explored. This project measures the satisfaction with life (as measured by the Satisfaction with Life Scale) and community integration (as measured by the Community Integration Measure). Character strengths are evaluated via two self-report

scales. Estimates of structural brain damage are gathered via diffusion tensor imaging in three main

areas of the prefrontal cortex: the dorsolateral, orbitofrontal, and ventromedial cortices. Ancillary

measures are included in the design in order to elucidate the relationships between positive psychology

constructs and important mediators/moderators of recovery from TBI: neuropsychological status,

perceived social support, problem-solving coping style, positive and negative affectivity, and comorbid

physical illness.
2-80 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Nebraska

Development of an Intelligently Controlled Assistive Rehabilitation

Elliptical (ICARE) Training System to Promote Walking and Fitness in

Persons with Physical Limitations

Madonna Rehabilitation Hospital

Movement Sciences Center

Institute for Rehabilitation Science and Engineering

5401 South Street

Lincoln, NE 68506

jburnfield@madonna.org

www.madonna.org/research_institute/movement_neurosciences/about _us/index.html

Principal Investigator: Judith Burnfield, PhD, PT

Public Contact: 402/483-9669

Project Number: H133G070209

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 07 $199,524; FY 08 $199,555

Abstract: The goal of this project is to develop ICARE, an Intelligently Controlled Assistive Rehabilitation Elliptical trainer and therapeutic program to help individuals with physical or mobility disabilities

regain and/or retain their walking ability and physical fitness. Specifically, the project develops, refines,

and field-tests a prototype ICARE trainer. It includes an affordable, intelligent control system that

adapts the movement pattern of the elliptical trainer to the unique physical assistance needs of individuals as they relearn to walk and exercise. The specific objectives of this project which address this goal

are to: (1) identify the best commercially available elliptical trainer to redesign into an ICARE trainer;

(2) develop, pilot test, and refine a prototype ICARE device in a controlled (laboratory) environment to

improve function, features, beneficial therapeutic effects for walking, and equipment durability; and (3)

implement usage of the ICARE system in three free-living environments (an inpatient rehabilitation

center, outpatient neurologic and orthopaedic clinic, and a community-based fitness facility) to evaluate

the capacity of the device to improve walking ability and cardiovascular function of persons with

varied gait dysfunctions and develop a therapeutic intervention program using the device.
NIDRR Program Directory FY 2008 - Health and Function 2-81

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Nebraska

Investigation of the Dynamics of Development of Sitting Postural

Control in Infants with Cerebral Palsy

University of Nebraska at Omaha

HPER Biomechanics Lab

6001 Dodge Street

Omaha, NE 68182-0216

nstergiou@mail.unomaha.edu

www.unomaha.edu/infant/

Principal Investigator: Nicholas Stergiou, PhD; Wayne A. Stuberg, PhD, PT; Regina T. Harbourne,

PT 402/554-3247

Public Contact: Lisa Holst 402/554-3075; Fax: 402/554-3693

Project Number: H133G040118

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000; FY 07 (No-cost extension

through 11/30/2008)

Abstract: The overall goal of this research is to understand the mechanisms underlying the development of postural control in sitting using new methodology, in order to provide a scientific basis for

evaluation and treatment of posture and movement disorders in infants with cerebral palsy. The development of early posture control remains poorly understood despite considerable therapeutic effort.

Infants with cerebral palsy show their first delays in the acquisition of sitting, with subsequent problems developing adequate posture and movement control. Identifying the delay, determining the nature

of the problem, and evaluating the effectiveness of treatment quickly, are vital in the early part of an

infant’s life, since this is the time of greatest plasticity. Tools from nonlinear dynamics, which are

increasingly being used to examine other biological rhythms, are used in this study to analyze postural

sway from center of pressure data during the development of sitting postural control.
2-82 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Nebraska

Investigation of Interventions for Sitting Postural Control in Young

Children with Moderate to Severe Cerebral Palsy

University of Nebraska at Omaha

HPER Biomechanics Lab

6001 Dodge Street

Omaha, NE 68162

nstergiou@mail.unomaha.edu

www.unomaha.edu/biomech/

Principal Investigator: Nicholas Stergiou, PhD 402/554-3247

Public Contact: Lisa Holst 402/554-3075; Fax: 402/554-3693

Project Number: H133G080023

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 08 $200,000

Abstract: This project identifies interventions that improve the quality of life for children with cerebral

palsy (CP). The first intervention focuses on principles of enhancing complexity in movement variability, which has been shown to be effective in improving infant sitting postural control in previous

research. The second intervention uses the paradigm of adding stochastic noise to the support surface

to improve postural responses, a method used successfully in adults with decreased postural control.

This project conducts three experiments: Experiment 1 utilizes nonlinear dynamics techniques to

quantify changes in postural control as measured by the center of pressure time series in sitting; Experiment 2 utilizes the same children as in Experiment 1, but examines functional changes in arm use,

focused attention, and play over time as sitting postural control improves; Experiment 3 examines

changes in self-care, participation, and gross motor function to determine the relationship between

changes in postural control and participation within the child’s environment. These experiments

enhance the ability to provide better methods to treat children with moderate to severe CP; and provide

a better understanding of the development of cognition, function, play, and participation for children

with CP in relation to improved postural control sitting.
NIDRR Program Directory FY 2008 - Health and Function 2-83

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Jersey

Quality of Life in Traumatic Brain Injury Research and Practice:

Development of the TBI-QOL

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052-1499

dtulsky@kmrrec.org

Principal Investigator: David S. Tulsky, PhD

Public Contact: 973/243-6849; 973/243-6916; Fax: 973/243-3527

Project Number: H133G070138

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 07 $199,830; FY 08 $199,414

Abstract: The scarcity of quality of life (QOL) measurement tools specific to traumatic brain injury

(TBI) hinders the efforts of TBI intervention researchers, whose goal is to obtain valid and useful data

to evaluate new treatment approaches. The goals of this study are to: (1) develop an instrument for

comprehensively assessing the health-related quality of life (HRQOL) of persons with TBI, regardless

of the severity of their condition; (2) enable comparisons of HRQOL in TBI with HRQOL in other

neurologic conditions by integrating this instrument with the Neuro-QOL project; and (3) investigate

and develop strategies for determining the HRQOL of individuals with even the most severe TBI, thus

ensuring that these individuals will be represented in initiatives that use this instrument, rather than

excluded as is often the case due to the difficulty of assessing such persons.
2-84 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Development of a Cognitive Behavioral Group Therapy Intervention

for Women with Physical Activity Disabilities who Experience

Depression

Oregon Health and Science University

School of Nursing

3455 SW US Veterans Road, SN-637

Portland, OR 97239-2941

phillide@ohsu.edu

Principal Investigator: Dena Hassouneh, PhD

Public Contact: 503/494-2714; Fax: 503/494-3878

Project Number: H133G070214

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 07 $198,701; FY 08 $199,926

Abstract: Rates of depression and suicide in women with physical disabilities (WPD) are up to five

times higher than in the general population. Despite this disparity, few intervention studies that address

the specific needs of this population are available. This project uses an existing cognitive behavioral

therapy (CBT) intervention that has demonstrated effectiveness in reducing depressive symptoms in

women without disabilities as a starting point to co-create an intervention that addresses the specific

needs of WPD. The co-creation process occurs in the context of a partnership between the investigators, WPD in the community, and community-based organizations including Oregon Centers for

Independent Living (CILs). The specific aims of this project are to: (1) Develop a cognitive behavioral

group therapy intervention to address the specific needs of WPD who experience depressive symptoms; and (2) pilot-test the intervention to preliminarily evaluate its efficacy with a total of 90 participants using a using a wait list control design. Phase I of the project involves development of the

curriculum based on the following information sources: four focus groups conducted with WPD,

review of empiric sources, community meetings, and feedback from our community advisors and

consultants. Phase II pilot-tests the intervention using both quantitative and qualitative methods to

assess its efficacy. A long-term goal of the proposed project is to increase the capacity of CILs and

other community-based organizations across the country to offer a relevant, effective, accessible, and

affordable intervention to help WPD with depression overcome this debilitating secondary condition.
NIDRR Program Directory FY 2008 - Health and Function 2-85

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Use of Functional Neuroimaging to Assess the Status of the Attention

Networks Following Traumatic Brain Injury

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

60 East Township Line Road

Elkins Park, PA 19027

Principal Investigator: John Whyte, MD, PhD

Public Contact: 215/663-6872; Fax: 215/663-6113

Project Number: H133G050219

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $149,975; FY 06 $149,996; FY 07 $149,952; FY 08 (No-cost extension

through 9/30/2009)

Abstract: Traumatic brain injury (TBI) is a common cause of disability, particularly in young adults.

Survivors of TBI frequently suffer from persistent cognitive impairments that interfere with the rehabilitation process, as well as return to school, work, and community life. Difficulties with attention,

including distractibility, difficulty concentrating, difficulty dividing attention (multi-tasking), and

cognitive fatigue during effortful tasks, are among the most frequent complaints of survivors of TBI

and their caregivers. This project studies the behavioral response and neural network activation patterns associated with performance of three tasks designed to rely heavily on the three distinct attention

networks: vigilance, executive, and orienting. The study compares uninjured control participants to

survivors of severe TBI, with respect to both behavior and brain activation studied with perfusion, and

fast event-related BOLD functional magnetic resonance imaging. The study also compares the performance of TBI survivors on active drug and placebo in two separate pharmacologic probe studies,

using single doses of bromocriptine (a D2 dopaminergic agonist) and nicotine (a nicotinic cholinergic

agonist), predicting different patterns of responses to the two agents.
2-86 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Zolpidem and Restoration of Consciousness: an Exploration of the

Mechanism of Action

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

60 East Township Line Road

Elkins Park, PA 19027

Principal Investigator: John Whyte, MD, PhD

Public Contact: 215/663-6872; Fax: 215/663-6113

Project Number: H133G080066

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 08 $199,553

Abstract: Severe brain damage due to traumatic or non-traumatic causes frequently results in unconsciousness (coma) and, in a minority of cases, may lead to prolonged or permanent disorders of consciousness (DOCs) including the vegetative and minimally conscious states. This project assesses the

responses of patients with DOCs to single doses of zolpidem and placebo in a double blind crossover

design, initially with structured caregiver reporting. Repeat studies with quantitative assessment by a

trained clinician follow for those who are believed to respond to the drug. Those classified as definite

drug responders, along with a matched sample of non-responders, are studied intensively in Philadelphia with a combination of structural and functional neuroimaging and electrophysiologic studies in an

exploratory fashion to develop preliminary hypotheses about the neural substrate required for responding to zolpidem. Project activities include recruiting of a national sample of individuals with DOCs to

participate in a consent-based, HIPAA compliant research registry, which will facilitate this and future

studies. This study helps to define the potential size of the population who may benefit from zolpidem

administration, encourages those who do benefit to seek ongoing clinical management, and allows

formulation of hypotheses about the mechanism of drug response that can be tested definitively in

subsequent research, making use of interested registry participants.
NIDRR Program Directory FY 2008 - Health and Function 2-87

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Treatment Components and Active Ingredients in a Scheduled

Telephone Intervention for Traumatic Brain Injury

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

60 East Township Line Road

Elkins Park, PA 19027

thart@einstein.edu

www.einstein.edu/facilities/mossrehab/index.html

Principal Investigator: Tessa Hart, PhD

Public Contact: 215/663-6153; Fax: 215/663-6113

Project Number: H133G070143

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $199,880; FY 08 $199,844

Abstract: This project studies the treatment components and active ingredients of an intervention for

post-acute, moderate and severe traumatic brain injury (TBI) known as Scheduled Telephone Intervention (STI). The STI was designed to help meet the multiple, evolving needs of people with TBI and

their families following rehabilitation hospital discharge, and consists of telephone calls placed by a

specially trained counselor at scheduled, gradually increasing intervals (seven calls in the first year post

TBI). Using a theoretically motivated model of candidate active ingredients in three classes: treatment

elements common to many interpersonal interventions (e.g., therapeutic alliance), treatment elements

related to goal self-management/ executive function theories, and modifier variables such as total dose

of treatment, the project analyzes the treatment components of the STI by coding archived, audiotaped

treatment sessions (calls) from 175 participants in the treatment arm of the multicenter randomized

controlled trial on the STI. This project: (1) develops an objective, reliable scoring system for measuring these treatment components; (2) characterizes relationships among pre-treatment participant characteristics (e.g., level of disability) and the treatment components delivered during a one-year course of

STI; (3) examines the longitudinal trends in treatment components during one year of treatment; and

(4) estimates the “activity” of various ingredients by examining the relationships among treatment

components and one-year outcomes, accounting for the direct effects of baseline status on both treatment process and outcomes.
2-88 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Understanding the Determinants of Motor Ability, Self-Care, and Play

of Young Children with Cerebral Palsy

Drexel University

Physical Therapy and Rehabilitation Sciences

245 North 15th Street, Mail Stop 502

Philadelphia, PA 19102

lisa.chiarello@drexel.edu

Principal Investigator: Lisa A. Chiarello, PT, PhD

Public Contact: 215/762-8805; Fax: 215/762-3886

Project Number: H133G060254

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $149,981; FY 07 $149,927; FY 08 $149,359

Abstract: The specific purpose of this project is to validate a multivariate model of determinants of

change in basic motor ability and engagement in self-care and play of young children with cerebral

palsy. The objective is to identify the child characteristics, family ecology, and rehabilitation and

community services that optimize outcomes. The project targets a subset of children with cerebral palsy

who as adults will not walk independently in the community and will require physical assistance for

self-care at times throughout the day. Information on the factors that enhance outcomes for these

children is particularly needed because families expend considerable time and resources to meet their

children’s health, education, and development needs. Knowledge of determinants of children’s change

in basic motor abilities and engagement in self-care and play will enable health care professionals and

educators to provide evidence-based interventions, support families, and optimize community resources.
NIDRR Program Directory FY 2008 - Health and Function 2-89

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Virtual Reality Assessment and Treatment of Hemispatial Neglect

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

1200 West Tabor Road, Korman 213

Philadelphia, PA 19141

lbuxbaum@einstein.edu

Principal Investigator: Laurel Buxbaum, PsyD

Public Contact: 215/456-5953; Fax: 215/456-5926

Project Number: H133G060086

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 06 $149,593; FY 07 $149,819; FY 08 $149,910

Abstract: The goal of this project is to address previous limitations in the assessment and treatment of

neglect through the use of virtual reality (VR) technology. Hemispatial neglect, a failure to attend to

and/or act on objects on the side of space opposite a brain lesion, is a common and persistent consequence of stroke, occurring in approximately 45 percent of the nearly 2 million Americans who have

suffered a right hemisphere cerebral vascular accident. The neglect syndrome is associated with impairments in a wide range of activities of daily living, with significant consequences for functional independence. This project capitalizes on a number of VR’s useful assets, including simulation of the

spatial and cognitive demands of real world environments, quantification of aspects of performance,

ready control of the experimental task, and ease of administration. The major aims are: (1) to develop

and validate a VR navigation task measuring lateralized attention (the VRLAT), an extension of a

sensitive VR task developed previously; (2) to perform clinical trials assessing the short-term efficacy

of two VR-based treatments for neglect that induce different types of mismatch between proprioceptive

and visual information, using the VRLAT as one of the measures of treatment response; and (3) to

perform clinical trails of the two treatments focused on generalization and maintenance of gains with a

longer course of treatment.
2-90 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

A Longitudinal Study of Risk for Hospitalization, Pressure Ulcers, and

Subsequent Injuries After Spinal Cord Injury

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

77 President Street, Suite 117

PO Box 250700

Charleston, SC 29425

cokerj@musc.edu

www.musc.edu/chp/sciorg/

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-5649

Project Number: H133G050165

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 05 $149,992; FY 06 $149,995; FY 07 $149,997; FY 08 (No-cost extension

through 11/30/2009)

Abstract: The onset of spinal cord injury (SCI) increases the risk for the development of a number of

secondary conditions that may adversely impact an individual’s life and even result in early mortality.

The purpose of this project is to perform a longitudinal study to identify protective and risk factors

associated with the onset of multiple types of adverse health events among a large sample of individuals with SCI. In 1997-8, prospective data was collected on 1,391 participants who included a substantial number of women (n = 362) and racial/ethnic minorities (n = 359). Risk and protective predictors

were selected based on a general empirical risk model. Predictor variables were first measured over a

10-month period in 1997-1998, including: (a) biographical status, (b) injury status, (c) psychological

status, (d) environmental factors, and (e) health behaviors. Several health outcomes measures were also

used. During this follow-up study, the project administers several new predictor measures along with

multiple outcome measures, several of which were also administered during the previous study. These

measures focus on adverse health events including hospitalizations, onset of pressure ulcers, subsequent injuries, and the onset of probable major depression. The project includes structural equation

modeling to develop risk models for each outcome. A consumer advisory committee meets bi-annually

to make recommendations regarding all components of the project. The ultimate study goal is to

enhance the lives of people with SCI by identifying the risk and protective factors associated with

adverse health events to serve as a foundation for prevention efforts by rehabilitation and public health

professionals. This directly empowers consumers to improve their own health by being provided with

concrete information and recommendations to promote better health and avoid preventable secondary

health complications.
NIDRR Program Directory FY 2008 - Health and Function 2-91

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

Participation, Subjective Well-Being, Health, and Spinal Cord Injury:

A 35-Year Longitudinal Study

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

77 President Street, Suite 117

PO Box 250700

Charleston, SC 29425

cokerj@musc.edu

www.musc.edu/chp/sciorg/

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-5649

Project Number: H133G060126

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $149,954; FY 07 $149,987; FY 08 $149,946

Abstract: The purpose of this 35-year longitudinal study is to identify the natural course of changes in

participation, health, and subjective well-being among five cohorts of participants with spinal cord

injury (SCI). Data were first collected in 1973 from 256 participants, 78 of whom have participated

throughout the study. Using a revolving panel longitudinal design, participants are followed over time

with new participant samples added to counter attrition. To date, there have been a total of 2,208

different participants over the 6 times of measurement, including nearly 100 who have lived 40 or

more years with SCI. This study is the seventh stage of data collection and addresses not only the

natural course through analysis of both cross-sectional and multiple longitudinal elements, but also

special issues including quality of life and termination of employment, change in living circumstance to

a more restrictive environment, and the role of environmental factors on stability of health and quality

of life. There are three primary activities: (1) finalization of instrumentation, based on consumer panel

recommendations and pilot testing; (2) primary data collection; and (3) consumer initiated development

of recommendations for healthy living with aging for consumers and policy recommendations for

rehabilitation professions and legislators.
2-92 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Effectiveness of a Group Cognitive-Behavioral Intervention for

Depression after TBI and Factors that Affect Response to Treatment

Memorial Herman

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

2323 South Shepherd, Suite 907

Houston, TX 77019

anclark@bcm.edu; struchen@bcm.tmc.edu

Principal Investigator: Allison Clark, PhD; Margaret Struchen, PhD; 713/630-0519 (Clark); 713/

630-0515 (Struchen)

Public Contact: Allison Clark, PhD 713/630-0519; Fax: 713/630-0529

Project Number: H133G070222

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $197,754; FY 08 $197,899

Abstract: This project is designed to evaluate the effectiveness of a group cognitive behavioral intervention (CBT group) for treating depressive symptoms in persons with traumatic brain injury (TBI), to

assess the impact of cognitive impairments on an individual’s response to the CBT group, and to assess

the impact of the CBT group on community participation and subjective well-being in persons with

TBI. The initial phase of this study involves utilizing input from consumer and expert advisors to

develop an approach and to adapt materials for use with persons with cognitive impairments. Once

adapted, the intervention is piloted with a group of five individuals with at least mild symptoms of

depression. After the pilot phase, a randomized, attention controlled clinical trial follows. Cognitivebehavioral approaches to treatment of depression have been demonstrated to have effectiveness in

many populations, including a growing body of evidence for effectiveness in persons with other types

of acquired brain injury. Given the inherent structure that such approaches utilize, which may help

minimize cognitive demands, cognitive behavioral therapy would appear well-suited to use with

persons with TBI.
NIDRR Program Directory FY 2008 - Health and Function 2-93

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Washington

Efficacy of Pressure Garment Therapy After Burns

University of Washington

Harborview Medical Center, Box 359796

325 Ninth Avenue

Seattle, WA 98104

engrav@u.washington.edu

Principal Investigator: Loren H. Engrav, MD

Public Contact: 206/731-3209

Project Number: H133G050022

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 05 $150,000; FY 06 $150,000; FY 07 $150,000; FY 08 (No-cost extension

though 9/30/2009)

Abstract: This project conducts a randomized, controlled trial to determine the efficacy of custom-fit

pressure garment therapy in the prevention of hypertrophic scarring in healed burns so that the garments may be prescribed based upon sound data or discontinue their use in burn care. Hypertrophic

scarring is one of the most devastating outcomes following burn injury. Pressure garments are the

common therapy to minimize these effects. However, these garments are unattractive, expensive, and

uncomfortable, and their use needs to be validated by rigorous research.
2-94 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Washington

Telephone and In-Person Cognitive Behavioral Therapy for Depression

After Traumatic Brain Injury

University of Washington

Department of Psychiatry and Behavioral Sciences

Box 356560

1959 NE Pacific Street

Seattle, WA 98195

fann@u.washington.edu

Principal Investigator: Jesse R. Fann, MD, MPH

Public Contact: 206/685-4280; Fax: 206/221-5414

Project Number: H133G070016

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 07 $199,873; FY 08 $199,981

Abstract: This project continues previous efforts to establish evidence-based treatments for major

depressive disorder (MDD) in people with traumatic brain injury (TBI). MDD is the most common

psychiatric disorder among TBI survivors and has widespread negative effects on health and functional

outcomes in people with TBI. This three-armed randomized controlled trial compares (1) in-person

cognitive behavioral therapy for depression that is adapted for people with TBI (CBT-TBI) and (2)

telephone-based CBT-TBI to a (3) usual depression care condition (UC). Previous research found that

people with TBI and depression are highly interested in using psychotherapy to treat depression.

Although psychotherapy is widely used in the treatment of general psychological aspects of TBI, solid

evidence for the efficacy of psychotherapy for MDD in this population is absent. While CBT is the

most evidence-based psychotherapy available for MDD, thus far there is only expert opinion to guide

how CBT should be adapted for people with TBI (i.e., to accommodate patients with neurocognitive

and neurobehavioral impairments). Therefore, this study adapts CBT specifically for people with TBI

in a three arm trial and measures the feasibility, acceptability, and potential effectiveness of this adapted

intervention in both telephone-administered and in-person formats, compared with UC. The long-term

goal of this research is to develop a feasible and effective manualized psychotherapy intervention to

treat major depressive disorder in persons with TBI that is applicable across a wide array of settings.
NIDRR Program Directory FY 2008 - Health and Function 2-95

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Adverse Outcomes Following Inpatient Rehabilitation: Trends and

Reasons

University of Wisconsin/Milwaukee

Department of Occupational Therapy

Enderis Hall 963

PO Box 413

Milwaukee, WI 53201

johnsto@uwm.edu

Principal Investigator: Mark Johnston, PhD

Public Contact: 414/229-3616

Project Number: H133G060218

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 06 $149,129; FY 07 $149,772; FY 08 $149,888

Abstract: Research is needed to develop the knowledgebase and tools necessary to address the

problem of increased rates of mortality and hospitalization following inpatient rehabilitation and to

examine explanations for adverse outcomes. Descriptive analyses are conducted first to describe

important trends in mortality and rehospitalization and to provide a basis for further analyses. Multivariate risk adjustment models – based on impairments, functional level, age, and other patient characteristics in extant databases – are then developed to predict adverse outcomes. These risk adjustment

models provide the necessary basis to distinguish the effects of patient severity and caseload from other

factors that affect adverse outcomes. Researchers then examine and test the effects of important facility

characteristics that may affect rates of adverse outcomes. The primary outcomes to be studied are

mortality and rehospitalization; functional decline is also studied, as it, too, may indicate medical

instability, and all three outcomes may or may not be predicted and affected by the same set of factors.
2-96 NIDRR Program Directory FY 2008 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Conservative and Surgical Clubfoot Treatment: Multi-Center Study

Marquette University

Orthopaedic and Rehabilitation Engineering Center

P.O. Box 1881

Milwaukee, WI 53201-1881

depps@mcw.edu

www.orec.org

www.marquette.edu

Principal Investigator: Peter A. Smith, MD

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133G060252

Start Date: January 01, 2007

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 06 $150,000; FY 07 $150,000; FY 08 $150,000

Abstract: This study is designed to compare the longer-term effects of two methods of clubfoot

treatment: (1) the conservative Ponseti technique of manipulation and casting, and (2) progressive

surgical release. Clubfoot is a congenital foot deformity occurring in 1 in 1,000 births. It is commonly

treated at pediatric orthopaedic hospitals and its incidence has been constant and not expected to

decrease. Treatment is ideally accomplished early in life, within the first year, and is often successful in

accomplishing a satisfactory, plantigrade foot, which will fit in shoes. Little is known, however about

the function of treated clubfeet. This project investigates the longer-term outcome of children with

treated clubfoot deformity using patient-based outcomes, functional instruments, motion analysis,

radiological assessment, and postural stability. The objective is to determine whether functional outcomes, postural stability, and gait analysis characterize overall patient satisfaction and motor performance and to quantify the effects of orthopaedic interventions.
Contents

Rehabilitation Engineering Research Centers (RERCs) ........................................................................ 3

Disability and Rehabilitation Research Projects .................................................................................. 29

Field Initiated Projects (FIPs) .............................................................................................................. 33

Small Business Innovation Research (SBIR), Phase I ......................................................................... 58

Small Business Innovation Research (SBIR), Phase II ....................................................................... 72

Technology for Access and Function

With NIDRR's research priorities, technology spans the goals of sustaining health

and function, employment, and participation and community living reflecting the

critical contributions of technology to successful outcomes for persons with

disabilities in all these areas. At the individual level, the primary focus is on assistive

technology devices that enhance the physical, sensory, and cognitive abilities of

people with disabilities and assist them in participating and functioning more

independently in the home, at work, in recreational settings, and at cultural and

community events. At the systems level, the emphasis is on applying technology

research and development in ways that enhance community integration,

independence, productivity, competitiveness, and equal opportunity by mitigating or

eliminating barriers found in large social systems such as public transportation,

telecommunications, IT, and the built environment.

NIDRR Program Directory FY 2008 - Technology for Access and Function 3-3

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

California

Rehabilitation Engineering Research Center: Develop and Evaluate

Technology for Low Vision, Blindness, and Multi-Sensory Loss

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

rerc@ski.org

www.ski.org/Rehab

Principal Investigator: John A. Brabyn, PhD 415/345-2110

Public Contact: Deborah Gilden, PhD 415/345-2000; Fax: 415/345-8455

Project Number: H133E060001

Start Date: August 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $950,000; FY 07 $950,000; FY 08 $950,000

Abstract: This Center conducts a program of research and development to enhance the independence

of blind, visually impaired, and deaf-blind individuals. Research includes investigation of assessment

methods to guide rehabilitation of infant cortical visual impairment; practical innovations in assessment

and interventions for elders with visual impairments; and development of independent assessment

guidelines for emerging visual prostheses. The Center also conducts research in access to graphical

information for blind, visually impaired, and deaf-blind persons, developing tools for rapid screen

overview, auditory and tactile graph presentation, image classification, and on-demand production of

tactile street maps. To address signage and travel information, the project is investigating information

interfaces for travelers who are blind or visually impaired, and innovative computer vision methods to

find and read existing print signs and labels. To address the rising barriers to accessing visual displays

and appliances for employment and daily living, there is a designer education campaign and development of a universal talking LCD/LED display reader, practical consumer tools, and jobsite adaptations

for employees who are blind or visually impaired. Other projects include development of a newgeneration robotic finger-spelling hand for deaf-blind communication, and pilot investigations of

difficulties in lipreading and sign language reading experienced by those with combined auditory and

visual impairment.
3-4 NIDRR Program Directory FY 2008 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Colorado

Rehabilitation Engineering Research Center for the Advancement of

Cognitive Technologies (RERC-ACT)

University of Colorado

Health Sciences Center

1245 East Colfax, Suite 200

Denver, CO 80218

cathy.bodine@uchsc.edu

www.rerc-act.org

Principal Investigator: Cathy Bodine

Public Contact: 303/315-1281; Fax: 303/837-1208

Project Number: H133E040019

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 04 $850,000; FY 05 $850,000; FY 06 $850,000; FY 07 $850,000; FY 08

$850,000

Abstract: The goal of this RERC is to research, develop, evaluate, implement, and disseminate

innovative technologies and approaches that will have a positive impact on the way in which individuals with significant cognitive disabilities function within their communities and workplace. The Center

incorporates: (1) a consumer-driven model for identifying the most significant barriers to independent

living and workforce participation; (2) an approach that is balanced and uses both well-established and

newly emerging technologies in its development projects; (3) a focus both on functional limitations and

specific disabilities; and (4) mutually beneficial partnerships with private industry and public agencies.

Research activities include: needs, knowledge, barriers, and uses of AT by persons with cognitive

disabilities; technology for remote family support for people with cognitive disabilities; influences on

AT use, non-use, and partial and inappropriate use by persons with traumatic brain injury; AT enhancement of written expression for children and adults; needs assessment for creating affordable, contextaware technologies; and technology to promote decision-making skills and self-determination for

students with cognitive disabilities. Development activities include: Design, implementation, and

deployment of context aware technologies for persons with cognitive disabilities residing in community living environments; development of HealthQuest, an Internet-based product that enables individuals with intellectual disabilities to become active participants in their own health care; XML

repository of common tasks; batteryless micropower sensors for context aware technologies; perceptive

animated interfaces for workforce training; and environmentally appropriate behavioral cues for

individuals with TBI.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-5

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

District of Columbia

Rehabilitation Engineering Research Center on Hearing Enhancement

Gallaudet University

Department of Hearing, Speech, and Language Sciences

800 Florida Avenue, NE

Washington, DC 20002

matthew.bakke@gallaudet.edu

www.hearingresearch.org

Principal Investigator: Matthew H. Bakke, PhD

Public Contact: 202/651-5335 (V/TTY); Fax: 202/651-5324

Project Number: H133E030006

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $949,999; FY 04 $949,024; FY 05 $949,480; FY 06 $949,998; FY 07

$949,999; FY 08 (No-cost extension through 9/30/2009)

Abstract: The mission of this RERC is to build and test components of a new, innovative model of

aural rehabilitation tools, services, and training, in order to improve assessment and fitting of hearing

technologies and to increase the availability, knowledge, and use of hearing enhancement devices and

services. Component A: (1) develops and evaluates new methods for field evaluation and fitting of

hearing aids; (2) develops and evaluates techniques to enhance auditory self-monitoring; and (3)

develops methods for predicting the speech-to-interference ratio and intelligibility of speech for a

hearing aid when used with a wireless telephone. Component B conducts a needs assessment survey

of people who use hearing technologies and evaluates the use of Bluetooth technology as a means of

improving and expanding wireless connection to a hearing aid. Component C investigates environmental factors affecting children’s speech recognition abilities in classroom settings. Component D

investigates the use of distortion product otoacoustic emission and reflectance for diagnosis of hearing

loss and tinnitus, and creates and standardizes sets of synthesized nonsense syllables for use in hearing

aid research. Component E develops a new, innovative model for the delivery of aural rehabilitation

services to adults with hearing loss. In addition the RERC conducts a program of training and dissemination that reaches a diverse audience of people, both consumers and professionals.
3-6 NIDRR Program Directory FY 2008 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

District of Columbia

Rehabilitation Engineering Research Center on Hearing Enhancement

Gallaudet Universitiy

Department of Hearing, Speech, and Language Sciences.

800 Florida Avenue, NE

Washington, DC 20002

www.hearingresearch.org

Principal Investigator: James Mahshie

Public Contact: 202/651-5329; Fax: 202/651-5792

Project Number: H133E080006

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $949,935

Abstract: This project builds and tests components of an innovative model of aural rehabilitation (AR)

tools, services, and training in order to assure a better match between hearing technologies and individuals in their natural environments. Project goals include: (1) improving assessment, fitting, availability, and use of hearing technologies; (2) increasing the quality, availability, and knowledge of AR

services; (3) training of consumers, service providers, and future researchers, developers, and practitioners; and (4) transferring technology and knowledge to agencies, standards bodies, consumers, and the

professions who influence the communicative effectiveness of those who are deaf or hard of hearing.

Additional component projects are designed to fall into four areas: (1) AR projects improve the assessment and treatment of individuals in need of AR; (2) hearing technology addresses the technology

challenges of real-life use of assistive technologies, hearing aids, and cochlear implants; (3) training

programs provide training of individuals who will become the rehabilitation innovators of the future;

and (4) dissemination and advocacy programs transfer technology and knowledge to agencies, standards bodies, consumers, and hearing professionals.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-7

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Wheeled Mobility

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

mobilityrerc@coa.gatech.edu

mobilityrerc.catea.org/

Principal Investigator: Stephen Sprigle, PhD, PT

Public Contact: 404/894-4960; Fax: 404/894-9320

Project Number: H133E030035

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,988; FY 04 $949,951; FY 05 $949,975; FY 06 $949,998; FY 07

$949,979; FY 08 (No-cost extension through 10/31/2009)

Abstract: The goal of this RERC is to undertake a major shift in the way wheeled mobility is conceptualized and understood, from the design of assistive devices that enable some individuals to perform

some activities, to the design of a broad range of interventions that enable as many individuals as

possible to actively engage and participate in everyday community life. Research activities include: (1)

User Needs and Design Input uses participatory focus groups to identify needs of wheelchair users; (2)

User Needs of Older Adults assesses the needs of older adults living at home and in other residential

settings; (3) Effects of Environment and Mobility Technology on Participation and Activity measures

the influences of environmental barriers and specialized wheelchair technology on participation and

activity in everyday life; (4) Efficacy of Animation and Visualization Training uses computer simulation techniques to investigate their efficacy in improving mobility training; and (5) Clinical and Functional Implications of Seating Standards and Guidelines studies the relationship between standardized

measures of cushion performance and actual impact on wheelchair users. Development efforts include:

(1) development and marketing of new mobility devices in collaboration with industry design partners;

(2) development of a wheelchair for frail elders that can be used in any residential environment; (3)

interventions to overcome barriers to participation including guidelines and technologies to help

wheelchair users overcome environmental and technological barriers; (4) development of animation

and visualization training through computer simulations to improve training in transfers and outdoor

mobility; and (5) development of valid wheelchair cushion test methods which enables clinicians to

prescribe appropriate wheelchair cushions based on positioning and load distribution.
3-8 NIDRR Program Directory FY 2008 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center for Wireless Technologies

Georgia Institute of Technology

Virginia C. Crawford Research Institute

Shepherd Center

2020 Peachtree Road, NW

Atlanta, GA 30309

wirelessrerc@shepherd.org

www.wirelessrerc.org

Principal Investigator: Helena Mitchell, PhD 404/367-1288

Public Contact: Lynzee Head 404/367-1288; Fax: 404/350-7596

Project Number: H133E060061

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $949,999; FY 07 $949,999; FY 08 $949,998

Abstract: The mission of this project is to: (1) promote equitable access to and use of wireless technologies by persons with disabilities; and (2) encourage adoption of Universal Design in future generations of wireless technologies. To accomplish these aims, the RERC is organized into three main

project sections: The Research Section is comprised of four research initiatives: Facilitating User

Centered Research is designed to establish a research portal that communicates to industry the needs of

people with disabilities for wireless technologies. Customer-driven Usability Assessment enhances the

usability of future generations of cell phones and other wireless products by developing a methodology

for assessing their usability by representative users with disabilities. Collaborative Policy Approaches

to Promote Equitable Access develops, implements, and evaluates specific policy initiatives related to

accessible wireless technologies and services. Advanced Auditory Interfaces develops, tests, and

disseminates guidelines for the design of advanced auditory interfaces for cell phones and other

handheld electronic devices. The Development Section includes four projects that promote equitable

access to and use of wireless technologies by persons with disabilities through the development of

prototype designs: Alternative Interfaces continues its work on the V2 standards for universal remote

consoles and Real-time Location-based Information Services expands on previous work on the

RERC’s personal captioning system by addressing the needs of patrons with vision or hearing impairments in three different venues: exhibit spaces, airports, and hospitals. Development of Wireless

Emergency Communications and Ensuring Access to Emergency Assistance both focus on the area of

wireless emergency communications for people with disabilities; developing wireless communication

technology to be used by emergency personnel to contact individuals with disabilities, and by people

with disabilities to signal the need for assistance. The Training and Dissemination Section promotes the

synthesis of new knowledge into practice with the RERC’s State of the Science conference and a

number of initiatives designed to educate consumers, providers, and other professionals, including:

university courses, an annual student design competition, conference tutorials, and workshops, all

geared toward access and usability of mobile wireless technologies.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-9

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Workplace

Accommodations

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

workrerc@coa.gatech.edu

www.workrerc.org

Principal Investigator: Karen Milchus 404/894-0393

Public Contact: 404/894-1414; 800/726-9119; Fax: 404/894-9320

Project Number: H133E070026

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 07 $949,999; FY 08 $949,999

Abstract: The Workplace Rehabilitation Engineering and Research Center (RERC) identifies, develops and promotes new assistive and universally designed technologies that maximize independence

and participation of people with disabilities in the workplace. It focuses on the application of universal

design (UD) concepts to improve the utility of workplace tools and devices for all workers through

research, development, training, and dissemination. Research activities investigate five topics identified

by current RERC research: user needs, longitudinal cost/benefits of accommodations, strategies used

by aging workers, the impact of policy on access to and utilization of accommodations, and the effect

of accommodations on employee participation in the workplace. Several development activities create

and validate new workplace assessment tools for use by practitioners and employees. Other development activities design, prototype, and evaluate new workplace accommodations. Universally designed

workstations and human-computer interfaces are being developed. In addition, the Work RERC

develops technology for workers with identified and unmet accommodation needs, including prompting aids for employees with developmental disabilities and accommodations for employees with

communication disabilities. Finally, Work RERC training activities include both instruction and evaluation of training outcomes and will target VR professionals, workers with disabilities, and students

interested in design and engineering.
3-10 NIDRR Program Directory FY 2008 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center for Wheeled Mobility in

Everyday Life

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

mobilityrerc@coa.gatech.edu

mobilityrerc.catea.org/

Principal Investigator: Stephen Sprigle, PhD, PT 404/385-4302

Public Contact: 404/894-4960 (V/TTY); Fax: 404/385-9320

Project Number: H133E080003

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $949,998

Abstract: This project promotes new ways of conceptualizing and understanding wheeled mobility—

focusing on devices and interventions that impact device use and activity performance. This approach

enables as many individuals as possible to actively participate in everyday life. Project goals include

four integrated program areas in research, development, training, and dissemination that utilize a

variety of methodologies and scientific approaches taking research out of the laboratory and putting it

into real-world, everyday environments. Research centers on four activities: R1. Pressure Ulcer Prevention: Susceptibility and Pressure Relief Effectiveness; R2. Effects of Mobility Device and Environmental Facilitators on Activity and Participation; R3. Improved Training to Improve Function which

studies the effect of immediate video feedback on acquisition of advanced wheelchair skills, and the

impact of an innovative wheelchair Tai Chi program on health, activity, and participation; and R4.

Improved Wheelchair Prescription which examines effects of wheelchair type on performance of

elders in public spaces and investigate how well clinicians predict the wheelchair use of their clients.

Development projects address standards and test methods and commercial projects and include: D1.

Development of Standards and Test Methods which develops three wheelchair cushion standards and

a wheelchair test method to accurately measure the mechanical effort required to propel manual wheelchairs; D2. Inventor-Driven Product Development that assists in developing products that have been

conceived by small companies and inventors; and D3. Development of Orphan Technologies, developing devices that have small markets but serve useful needs. Four training projects focus on a variety

of audiences including: T1. Evidence-Based Online Wheelchair Seating and Positioning Course; T2.

Advanced Rehabilitation Research Training; T3. Creating Rehabilitation Engineering and Assistive

Technology Experiences; and T4. State of the Science Conference.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-11

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Recreational

Technologies and Exercise Physiology Benefiting Persons with

Disabilities (RERC RecTech)

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Suite 712

Chicago, IL 60608-6904

jrimmer@uic.edu

www.rectech.org

Principal Investigator: James H. Rimmer, PhD

Public Contact: 312/413-9651; Fax: 312/355-4058

Project Number: H133E070029

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 07 $950,000; FY 08 $950,000

Abstract: This center includes a coordinated set of research, development, capacity building, and

dissemination projects focused on facilitating and promoting healthier, more active lifestyles for people

with disabilities. The key target areas for the research and development projects are improving access

to recreation and exercise venues and equipment, increasing opportunities for participation by people

with disabilities in beneficial exercise, using technology to support greater adherence to regular exercise, and promoting better health and function for people with disabilities through active lifestyles. The

research and development agenda of the RERC provides the context for a growing capacity building

effort targeting not only the next generation of leadership in engineering, research, and clinical practice

but also infusing rehabilitation engineering concepts and principles into the curriculum of related

disciplines. A broad and active dissemination program makes effective use of a non-profit organization

advocating for inclusive recreation and exercise opportunities for people with disabilities: The Inclusive Fitness Coalition (IFC - www.incfit.org) currently has 53 member organizations representing the

recreation and fitness industry, fitness and exercise science professionals, researchers, disability organizations, professional organizations, rehabilitation centers, and others united by a common goal of

furthering inclusive opportunities for people with disabilities to participate in recreation and exercise in

their own communities.
3-12 NIDRR Program Directory FY 2008 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Robotics and Telemanipulation Machines Assisting

Recovery from Stroke Rehabilitation Engineering Research Center

(MARS-RERC)

Rehabilitation Institute Research Corporation (RIRC)

Sensory Motor Performance Program (SMPP) and the Department of Physical Medicine and

Rehabilitation at Northwestern University

345 East Superior Street, ONT-924

Attn: MARS-RERC Research Administration Chicago

Chicago, IL 60611-2654

medevitt@ric.org; j-patton@northwestern.edu

www.mars-rerc.org

Principal Investigator: W. Zev Rymer, MD, PhD 312/238-3919

Public Contact: Jim Patton, PhD 312/238-1277; Fax: 312/238-7605

Project Number: H133E070013

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 07 $949,775; FY 08 $949,779

Abstract: The RERC on Rehabilitation Robotics and Telemanipulation entitled, Machines Assisting

Recovery from Stroke Rehabilitation or MARS-RERC is a multi-institutional center designed to

evaluate the utility of simple robotic devices for providing rehabilitation therapy after hemispheric

stroke. The focus is largely on stroke, because this is the most common neurological disorder requiring

intensive and prolonged rehabilitation. The broad objective of MARS-RERC is to develop devices that

assist the therapist in providing rationally based, intensive treatments that are longer in duration than

without them. MARS-RERC monitors progress of the stroke survivors and with the goal of improving

the functional performance of stroke survivors so there is a greater likelihood of their return to community and to work. MARS-RERC is hosted at the Rehabilitation Institute of Chicago (RIC) and together

with multi-national partners at Northwestern University, University of Illinois at Chicago, University of

California at Irvine, ETH in Zurich, and INAOE, Puebla, Mexico, the Center designs and implements

a program of research and development, investigating the use of robot devices and related engineering

technologies for better restoration of function in stroke survivors. The focus is on the application of

new approaches that improve recovery outcomes of the entire body during either upper extremity

reach-and-grasp activities or lower body locomotion activities. MARS-RERC includes six programs of

study. There are three development projects that create: (1) new capabilities of the Lokomat® walking

robot, (2) hand technologies to improve reaching and finger extension, and (3) a telerehabilitation

protocol using an arm gravity-assistance device. There are also two research projects that are studying:

(1) the benefits of error augmentation in relearning after stroke, and (2) over ground gait rehabilitation

using the KineAssist® robot. Additionally, a separate advanced training project with engineering

students is dedicated to the design of robotic devices to use in stroke rehabilitation.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-13

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Prosthetics and

Orthotics

Northwestern University

345 East Superior Street, Room 1441

Chicago, IL 60611

reiu@northwestern.edu

www.feinberg.northwestern.edu/depts/repoc/index.html

Principal Investigator: Steven Gard, PhD; Stefania Fatone, PhD, BPO

Public Contact: 312/238-6500; Fax: 312/238-6510

Project Number: H133E080009

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $949,999

Abstract: This project improves the quality of life for persons who use prostheses and orthoses

through creative applications of science and engineering to prosthetics and orthotics (P&O) through

seven research projects and five development projects. These projects enhance the ability of prosthesis

and orthosis users to perform activities of daily living and negotiate their daily environment safely and

effectively, engage in their chosen employment/vocation, and improve their health through the safe and

effective use of P&O devices. Increasing understanding about the fundamental biomechanics of

standing, walking, reaching, grasping, and the corresponding utilization of P&O devices for these

activities enable better evaluation and improvement upon current P&O technologies. Research is broad

in scope involving lower-limb prosthetics, lower-limb orthotics, upper-limb prosthetics, analysis of

spinal motion during gait in users of prostheses, and utilization of process and outcome information to

improve P&O care delivery. Additional focus is given to the needs of farmers and ranchers with

amputations. Development projects focus on human locomotion, reaching, grasping, and manipulation;

and providing efficient and cost-effective production of prosthetic components with the goal to assist

P&O clinicians in their daily practices by providing them with new mechanisms, evaluation and

designs tools, and information about prosthetic/orthotic usage.
3-14 NIDRR Program Directory FY 2008 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Michigan

Rehabilitation Engineering Research Center on Wheelchair

Transportation Safety

University of Michigan

Transportation Research Institute

2901 Baxter Road

Ann Arbor, MI 48109-2150

www.rercwts.org

Principal Investigator: Lawrence W. Schneider, PhD (Michigan); Patricia Karg, MS (Pittsburgh);

Gina Bertocci, PhD (Louisville)

Public Contact: Lawrence W. Scheneider, PhD 734/936-1103; Fax: 734/647-3330

Project Number: H133E060064

Start Date: November 01, 2006

Length: 60 months

NIDRR Officer: William V. Schutz, PhD, MSW, MPH

NIDRR Funding: FY 06 $899,753; FY 07 $899,708; FY 08 $899,749

Abstract: Research conducted by the RERC on Wheelchair Transportation Safety (RERC WTS)

advances the safety, usability, and independence of people who remain seated in their wheelchairs

when traveling in motor vehicles. Research and development projects involve close collaboration with

manufacturers, transit providers, vehicle modifiers, clinicians, and consumers to ensure quick translation of results into meaningful solutions that benefit travelers with mobility disabilities. Projects range

from developing innovative solutions for forward-facing and rear-facing wheelchair passenger stations

in large accessible transit vehicles, to investigating issues of school-bus transportation for children

seated in WC-19 compliant and noncompliant wheelchairs, and to improving frontal- and rear-crash

protection for occupants in private vehicles. Continuing research from previous grants, the RERC

WTS extends the in-depth investigations of adverse events involving wheelchair-seated travelers, but

also conducts a study of the transportation experience of wheelchair users in large public transit vehicles, including the process of entering and exiting the vehicle, accessing the wheelchair station,

securing the wheelchair and restraining the occupant, and traveling to and from destinations. In addition to conducting research and development in six project areas, RERC WTS staff engages in information dissemination, training of future researchers, transferring innovative technology concepts to the

marketplace, developing and revising voluntary industry standards, and convening the second State-ofthe-Science Workshop on Wheelchair Transportation Safety. The RERC is a partnership of the University of Michigan Transportation Research Institute, the University of Pittsburgh, the University of

Louisville, and the University of Colorado.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-15

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

New Jersey

Rehabilitation Engineering Research Center on Children with

Orthopedic Disabilities

New Jersey Institute of Technology

323 M. L. King Street

Newark, NJ 07102

foulds@njit.edu

rerc.njit.edu/

Principal Investigator: Richard A. Foulds, PhD

Public Contact: 973/596-3335

Project Number: H133E050011

Start Date: November 01, 2005

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $949,700; FY 06 $949,646; FY 07 $949,266; FY 08 $949,266

Abstract: This project focuses on research and development assisting children to achieve their full

potential as productive citizens. The work plan includes a roster of projects designed to enhance the

physical skills of these children to be successful in learning, playing, and living independently. This

project includes three research and three development projects, as well as training projects serving the

needs of children, families, students, and professionals. Project selection is driven by the RERC’s

vision of RERCs as a source of innovation and of new technologies designed to address the serious

problems faced by children with disabilities. This project is a collaboration of New Jersey Institute of

Technology, the Childrens’ Specialized Hospital, and Rutgers University, bringing together two

academic departments of biomedical engineering with the nation’s largest pediatric rehabilitation

hospital.
3-16 NIDRR Program Directory FY 2008 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering Research Center on Technology Transfer

(T2RERC)

University at Buffalo

The State University of New York

Center for Assistive Technology

322 Kimball Tower

Buffalo, NY 14214-3079

jimleahy@acsu.buffalo.edu

t2rerc.buffalo.edu

Principal Investigator: Steve Bauer, PhD 716/829-6760

Public Contact: James Leahy 716/829-3141 (V); 800/628-2281 (TTY); Fax: 716/829-2420

Project Number: H133E030025

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,999; FY 04 $950,000; FY 05 $950,000; FY 06 $950,000; FY 07

$950,000; FY 08 (No-cost extension through 9/30/2009)

Abstract: The activities of this project transfer and commercialize new and improved assistive devices,

conduct research to improve technology transfer practice, and support other stakeholders involved in

the technology transfer process. Four research projects investigate innovative ways to facilitate and

improve the process of technology transfer for all stakeholders: (1) Identify Innovative Technology

Transfer Practices draws critical success factors from examples of retrospective and prospective AT

transfer case studies in various sectors; (2) Identify Innovative Technology Transfer Policies traces the

outputs and outcomes of Federal transfer programs supporting AT related projects and assesses their

efficacy; (3) Facilitate AT Industry Innovation Through Focused Market Research provides a context

for transfer opportunities involving the AT industry and for public policy decision making; and (4)

Assess the Efficacy of Transferred Products determines the extent to which products previously transferred through the T2RERC impact the functional capabilities of consumers. Four development

projects increase the number and quality of successful transfers from RERCs and other sources: (1)

Transfer Products Through a Supply Push Approach facilitates the movement of new or improved

prototype inventions to the marketplace through licenses, sales, or entrepreneurial ventures; (2) Transfer Technologies Through a Demand Pull Approach validates technology needs within the AT industry

and introduces advanced technology solutions to address those needs; (3) Improve the Accessibility of

New Mainstream Products extends participatory research to integrate consumers’ functional requirements into the design of new mainstream products; and (4) Facilitate RERC Transfer Activity Through

Informatics establishes a pilot informatics infrastructure and assesses its utility for increasing communication, collaboration, and transfers between RERCs.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-17

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering and Research Center (RERC) on Universal

Design and the Built Environment at Buffalo

University at Buffalo

The State University of New York

School of Architecture and Planning

378 Hayes Hall

Buffalo, NY 14214

rercud@ap.buffalo.edu

www.ap.buffalo.edu/idea/rercud.asp

Principal Investigator: Edward Steinfeld, ArchD 716/829-3485

Public Contact: Danise Levine 716/829-3485, ext. 329; Fax: 716/829-3861

Project Number: H133E050004

Start Date: November 01, 2005

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 05 $949,996; FY 06 $949,994; FY 07 $949,999; FY 08 $949,997

Abstract: The RERC on Universal Design and the Built Environment (RERC-UD) is engaging the

public and private sectors across four broad domains of the built environment: (1) community infrastructure, (2) public buildings, (3) housing, and (4) products. The RERC-UD generates strategically

important research, development, education, and dissemination deliverables, to advance the fields of

rehabilitation engineering and environmental design. The RERC-UD deliverables integrate universal

design principles within the generally accepted models, methods, and metrics of design and engineering professionals in the building and manufacturing industries. Research projects document the efficacy of existing universally designed environments, and generate critical human factors data essential

to resolving design and engineering problems. Development projects create evidence-based guidelines

to implement universal design concepts within the tools of the design professions, and formulate

methods to evaluate the usability of designs for people with mobility, sensory, and cognitive impairments. The usefulness of the guidelines and evaluation methods are demonstrated by applying them to

the development of innovative products and environments with industry partners. Training activities

emphasize online certificate programs in universal design for design professionals, builders, manufacturers, and consumer advocates; a web portal and site for students and educators; and graduate programs that train researchers in advanced methods. Dissemination outputs include traditional refereed

and trade publications, an extensive website with downloadable information products and design tools,

model home demonstrations in local communities across the country, and outreach activities with

professional, business, and standards development organizations. The RERC-UD’s state-of-thescience conference includes stakeholders in a plan to elevate universal design to an integral component

of the mainstream design and engineering disciplines.
3-18 NIDRR Program Directory FY 2008 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center on Communication

Enhancement

Duke University

Department of Surgery

Division of Speech Pathology and Audiology

Duke University Medical Center, Box 3888

Durham, NC 27710

aac-rerc@mc.duke.edu

www.aac-rerc.com

Principal Investigator: Frank DeRuyter, PhD 919/684-6271

Public Contact: Kevin Caves, ME, ATP 919/681-9983; Fax: 919/681-9984

Project Number: H133E030018

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,977; FY 04 $949,973; FY 05 $949,974; FY 06 $949,976; FY 07

$949,974; FY 08 (No-cost extension through 10/31/2009)

Abstract: The mission of this RERC is to assist people who use augmentative and alternative (AAC)

technologies in achieving their goals across environments. The goals and objectives of the RERC are

to advance and promote AAC technologies through the outputs and outcomes of research and development activities and to support individuals who use, manufacture, and recommend these technologies

in ways they value. Research projects cover the following areas: (1) improving AAC technology to

better support societal roles; (2) enhancing AAC access by reducing cognitive/linguistic load; and (3)

enhancing AAC usability and performance. Projects address issues of literacy, telework, specialized

vocabulary, contextual scenes and intelligent agents, improving interface performance, and monitoring

and simulating communication performance. Development activities include: (1) technology and policy

watch; (2) new interfaces; and (3) reducing the cognitive/linguistic burden on AAC users. Activities

address monitoring emerging technologies, standards, and policies; technologies to supplement intelligibility of residual speech, dysarthric speech, and gesture recognition; brain interface; AAC

WebCrawling; and enhancing the role of listeners in AAC interactions.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-19

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center for Communication

Enhancement (AAC-RERC)

Duke University

Department of Surgery

Division of Speech Pathology and Audiology

220 West Main Street

Durham, NC 27705

aac-rerc@mc.duke.edu

www.aac-rerc.com

Principal Investigator: Frank DeRuyter, PhD 919/684-6271

Public Contact: Jessica House 919/681-9983; Fax: 919/681-9984

Project Number: H133E080011

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $949,965

Abstract: The mission of the AAC-RERC is to assist people who use augmentative and alternative

communication (AAC) technologies in achieving their goals across environments. The goals and

objectives of the AAC-RERC are to advance and promote AAC technologies through the outputs and

outcomes of our research and development activities; and to support individuals who use, manufacture,

and recommend these technologies in ways they value. The project builds on collaborative relationships with researchers and developers both in and outside of the field of AAC and assistive technology, including DynaVox Technologies, the Federal Laboratory Consortium, Department of Navy, and

Research In Motion (RIM) among others. Research projects include: (1) AAC technologies to reduce

cognitive/linguistic load; (2) new interface strategies for AAC technologies; and (3) AAC technologies

to increase usability, acceptance, and learnability. Development activities include: (1) connecting to the

world - AAC access to mainstream technologies; (2) new interface strategies for AAC technologies;

and (3) usability, acceptance, and learnability of AAC technologies.
3-20 NIDRR Program Directory FY 2008 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Oregon

National Center for Accessible Public Transportation

Oregon State University

Owen Hall 220

Corvallis, OR 97331-2312

ncat@oregonstate.edu

ncat.oregonstate.edu/

Principal Investigator: Katharine Hunter-Zaworski, PhD

Public Contact: Julie Barlow 800/916-0099; Fax: 541/737-3052

Project Number: H133E030009

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,479; FY 04 $949,259; FY 05 $949,044; FY 06 $949,260; FY 07

$949,659; FY 08 (No-cost extension through 9/30/2009)

Abstract: This RERC addresses the need for improvements in the accessibility of public transportation. This center is both important and timely because of major changes in the travel industry, and the

need to adapt to those changes in a way that provides safe and dignified travel for persons with disabilities. The transportation focus of this RERC is inter-city travel via air, rail, and bus. Air, rail, and

over-the-road buses account for nearly all inter-city public transportation. Accessibility issues focus on

persons with mobility, agility, and hearing disabilities, and account for a large percentage of persons

with disabilities. Two areas of research are addressed: (1) the biomechanics of wheelchair transfers in

confined spaces; and (2) the perceptions, reactions, and attitudes of subjects towards existing and

proposed accessibility solutions. The biomechanics studies include the use of a sophisticated eightcamera motion analysis system in conjunction with force plates to determine the motions and forces

involved in dependent and independent transfers in confined spaces, such as an aircraft aisle. The

survey-based study includes comprehensive surveys of groups that are directly involved with accessibility issues including travelers with disabilities, non-travelers with disabilities, and employees of

airlines and airports. Drawing on results of their research, the RERC focuses on four development

topics: (1) vehicle boarding technologies; (2) real time passenger information and communications

systems; (3) accessible lavatories; and (4) passenger assistance training tools and techniques. The

accessible lavatory project has two main components: regulations and new designs for the next generation of aircraft.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-21

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Telerehabilitation

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

2310 Jane Street, Suite 1300

Pittsburgh, PA 15203

dkeelan@pitt.edu

www.rerctr.pitt.edu

Principal Investigator: David M. Brienza, PhD 412/586-6907

Public Contact: Debby Keelan 412/586-6905; Fax: 412/586-6910

Project Number: H133E040012

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 04 $849,890; FY 05 $849,930; FY 06 $849,922; FY 07 $849,991; FY 08

$849,984

Abstract: The vision of this RERC is to serve people with disabilities by researching and developing

methods, systems, and technologies that support remote delivery of rehabilitation and home health care

services for individuals who have limited local access to comprehensive medical rehabilitation outpatient and community-based services. Research and development activities include: (1)

Telerehabilitation Infrastructure and Architecture: development of an informatics infrastructure and

architecture that builds on existing programs and technologies of the University of Pittsburgh Medical

Center’s e-Health System, supports the RERC’s research and development activities, meets HIPAA

requirements, provides a test-bed for third party telerehabilitation applications, and can be used as a

model for future telerehabilitation infrastructure; (2) Telerehabilitation Clinical Assessment Modeling:

development of a conceptual model for matching consumers with telerehabilitation technology. The

model is user-oriented and driven by consumer experiences regarding satisfaction, simplicity, and

reimbursability of telerehabilitation; (3) Teleassessment for the Promotion of Communication Function

in Children with Disabilities: development of a web-based teleassessment infrastructure that links

therapists and child participants, allowing therapeutic content to be adapted to the child’s individual

progress and abilities; (4) Remote Wheeled Mobility Assessment: determines if individuals with

mobility impairments can obtain appropriate prescriptions for wheeled mobility devices through the use

of a telerehabilitation system based upon information and telecommunications technologies; (5) Behavioral Monitoring and Job Coaching in Vocational Rehabilitation: researches technologies to conduct

remote delivery of rehabilitation services to individuals who have limited access to rehabilitation

services that are necessary to participate in and achieve education and employment outcomes in their

community; and (6) Remote Accessibility Assessment of the Built Environment: determines the

effectiveness of a remote accessibility assessment system in evaluating the built environment of

wheeled mobility device users.
3-22 NIDRR Program Directory FY 2008 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Spinal Cord Injury

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

2310 Jane Street, Suite 1300

Pittsburgh, PA 15203

dkeelan@pitt.edu

Principal Investigator: David M. Brienza, PhD 412/586-6907

Public Contact: Debby Keelan 412/586-6905; Fax: 412/586-6910

Project Number: H133E070024

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 07 $949,999; FY 08 $950,000

Abstract: This center conducts research, development, and evaluation of innovative technologies and

approaches that will improve the treatment, rehabilitation, employment, and reintegration into society

of persons with spinal cord injury (SCI). Research and development activities address tissue integrity

management, upper extremity musculoskeletal injury prevention, and bladder function. Specific

projects address: (1) the development of computational models of inflammation and healing for assessment of person-specific interventions and for general technology/intervention evaluations for pressure

ulcer prevention and detection, (2) evaluation of the effects of support surface active cooling and low

shear followed by development and evaluation of a novel seat cushion incorporating these features, (3)

the development and evaluation of tools for manual wheelchair propulsion training, (4) the evaluation

of novel manual wheelchair propulsion devices for preventing shoulder injury, (5) the evaluation of a

weight shifting approach for preventing pressure ulcers, and (6) the development of preliminary

computational models of inflammation and healing for evaluating bladder function and musculoskeletal

injury status. The research team and collaborators include the Department of Rehabilitation Science

and Technology, the Department of Physical Medicine and Rehabilitation, the McGowan Institute for

Regenerative Medicine, and the Department of Occupational Therapy at the University of Pittsburgh

plus Case Western Reserve University, Northwestern University, Baylor College of Medicine, IBM,

and Immunetrics. The technology transfer program targets private and public sectors. The training and

knowledge translation plan is equally broad based, targeting graduate and undergraduate students,

practicing clinicians, researchers, and individuals with SCI and their caregivers.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-23

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Accessible Public

Transportation

Carnegie Mellon University

Robotics Institute

5000 Forbes Avenue

Pittsburgh, PA 15213

Principal Investigator: Aaron Steinfeld, PhD

Public Contact: 412/268-6346; Fax: 412/268-6436

Project Number: H133E080019

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $948,199

Abstract: The goal of this project is to establish an effective and sustainable process to address the

high priority transportation needs of people with disabilities using enabling technology and universal

design. The RERC activities respond to the character of public transportation and its societal context,

including its significant role in employment and social participation. The approach focuses on transportation as a travel chain where problems in early links can block access to a whole system. The project

mix also leverages emerging information technologies and addresses the need for consumer-driven

solutions that can be rapidly implemented and adapted to a wide range of transportation systems.

Research and development activities include: (1) evaluate accessible and affordable tools for empowering consumers and service providers to collect and utilize research data, an example of “citizen science”; (2) provide an evidence base for boarding and disembarking policies, practices, and products

with an in-depth examination of critical issues in vehicle ramp and interior design; (3) create a public

website where riders can report on their experiences using a transportation system and software that

can assist them in reaching their destination; and (4) produce guidelines, reference designs, and a

demonstration bus with new vehicle interior concepts that are ready for commercialization. RERC

activities also include active training and dissemination of evidence-based guidelines to stakeholders,

publications, a state of the science conference, and capacity building for future research.
3-24 NIDRR Program Directory FY 2008 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Universal Interface and

Information Technology Access

University of Wisconsin/Madison

Trace Research and Development Center

2107 Engineering Centers Building

1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

trace.wisc.edu/itrerc

Principal Investigator: Gregg C. Vanderheiden, PhD 608/263-5788

Public Contact: Kate Vanderheiden 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E030012

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $1,000,000; FY 04 $1,000,000; FY 05 $1,000,000; FY 06 $1,000,000; FY

07 $1,000,000; FY 08 (No-cost extension through 03/31/2009)

Abstract: The focus of this RERC is on both access to information (e.g., content) in its various forms,

as well as access to interfaces used within content and by electronic technologies in general. The

research and development program is carefully designed to provide an interwoven set of projects that

together advance accessibility and usability in a fashion that takes into account, and supports, the full

range of access strategies used by manufacturers and people with disabilities. These strategies range

from enhancing the design of mainstream products that can be used by individuals with different ability

sets to enhancing the ability of users to deal with the information and interfaces as they encounter

them. Key to these projects are the development of new models and approaches for characterization of

the functional requirements of current and future interfaces, and a better understanding of the type,

diversity, and similarity of functional limitations across etiologies and disabilities. Research activities

include: model generation and initial pilot studies for the characterization of interface requirements

(current and emerging) and cross-disability user abilities; abstract user interfaces and human interface

sockets; emerging technologies and future research needs; and accessible real-time visual information

presentation in meetings and virtual meetings. Development projects include: tools to facilitate the

incorporation of cross-disability interface features in public information technologies; tools to facilitate

AT-IT interoperability; server-based and “virtual assistive technology”; and support for national and

international standards and guidelines efforts.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-25

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Telecommunication

Access

University of Wisconsin/Madison

Trace Research and Development Center

2107 Engineering Centers Building

1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

trace.wisc.edu/telrerc

Principal Investigator: Gregg C. Vanderheiden, PhD (Trace); Judy Harkins, PhD (Gallaudet

University) 608/263-5788 (Trace); 202/561-5257 (Gallaudet)

Public Contact: Kate Vanderheiden 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E040013

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $850,000; FY 05 $924,988; FY 06 $850,000; FY 07 $850,000; FY 08

$850,000

Abstract: The primary mission of the Telecommunications Access RERC is to advance accessibility

and usability in existing and emerging telecommunications products for people with all types of disabilities. Telecommunications accessibility is addressed along all three of its major dimensions: user

interface, transmission (including digitization, compression, etc.), and modality translation services

(relay services, gateways, etc.). The RERC looks at advances that have both short- and long-term

outcomes related to assistive technologies (AT), interoperability, and universal design of telecommunications. The RERC encompasses research and development programs, as well as training, technical

assistance, and dissemination activities. A large part of the RERC’s research and development program

is directly related to the rapidly emerging Voice over IP (VoIP) technologies and other IP-based systems. The goal is to help ensure that these new technologies are accessible and usable by people with

hearing impairments, blindness, and other disabilities. The research and development program of this

RERC covers three areas: (1) Development of tools, techniques, and performance-based measures that

can be used to evaluate current and evolving telecommunication technologies. Included in this area are

two projects to define the essential audio and video characteristics of IP telecommunication needed to

support sign language, video relay interpreting, IP based speech, and lipreading. (2) Solving the

problems faced by individuals using hearing aids or cochlear implants with digital phones. Three

projects cover both digital cellular and home cordless phones, and are focused on quantifying the

problem, identifying solutions, providing tools that users can employ to match appropriate hearing

technologies with telecommunication technologies, and helping to test and validate interference standards. (3) Improving access to emerging telecommunications - particularly digital and IP based systems. Projects in this area will: (a) Identify techniques to alert people about possible emergencies and to
3-26 NIDRR Program Directory FY 2008 - Technology for Access and Function

ensure accessible communication in emergency or crisis situations; (b) seek solutions for the current

incompatibility issues around text communications and ways to build the necessary capabilities into

mainstream technologies, to allow them to evolve to new text, speech, and visual communication

technologies; and (c) develop guidelines and reference materials to help mainstream telecommunications manufacturers build their regular products in a way that allows individuals with visual, hearing,

physical, and cognitive disabilities to be able to use them. The goals of the RERC’s training, technical

assistance, and dissemination activities are: To increase the number and level of expertise of people

working to make standard telecommunication systems and products accessible and usable for people

who have disabilities or who are aging; to move ideas and concepts out into the field in the form of

standards or commercial products; and to provide useful information from our research to the telecommunications industry, consumers, and policymakers.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-27

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center for Universal Interface

and Information Technology Access

University of Wisconsin/Madison

Trace Research and Development Center

1550 Engineering Drive, Room 2107 ECB

Madison, WI 53706-1609

info@trace.wisc.edu

trace.wisc.edu/itrerc

Principal Investigator: Gregg C. Vanderheiden, PhD 608/263-5788

Public Contact: Kate Vanderheiden 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E080022

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $950,000

Abstract: This project focuses on the accessibility of information technologies and electronic products,

including the technologies and products encountered in education, work, travel, and in the home and

community, both online and in life, for persons across disabilities types and socio-economic levels.

This project’s four goals focus on the following: (1) the development of models and measures that can

lead to better policy and more useful information for designers interested in creating products that are

accessible and useable across disabilities; (2) creating a collaborative effort to build accessibility

directly into the Internet and address underlying issues in the area of assistive technology; (3) advancing research on and the use of personal pluggable user interfaces focusing on their effectiveness in

providing access to different types of mainstream technology (Project R2) and facilitating the incorporation of interface sockets in mainstream products (Project D2); and (4) continuing to advance commercial practice around accessibility; that is, taking concepts that have proven to be effective and

making commercially available products which address the needs of people with disabilities. Each of

these four goals seeks to foster change in rehabilitation or commercial practice, so that people with all

levels of disability and all levels of socio-economic standing have effective access to both current

technology and the rapidly evolving next-generation technologies. Finally, this project focuses on

capacity building in the field through training and mentoring activities in affiliation with the Biomedical Engineering and Industrial & Systems Engineering departments at the University of WisconsinMadison in addition to other key stakeholders engaged in making information technology more accessible for people with disabilities.
3-28 NIDRR Program Directory FY 2008 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Accessible Medical

Instrumentation

Marquette University

Department of Biomedical Engineering

P.O. Box 1881

Milwaukee, WI 53201

jack.winters@marquette.edu

www.rerc-ami.org

Principal Investigator: Jack Winters, PhD; Molly Follette Story, MS 414/288-6640 (Winters); 707/

578-6839 (Story)

Public Contact: June Isaacson-Kailes 310/821-7080800/832-0524; Fax: 909/469-5503

Project Number: H133E020729

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $901,131; FY 03 $899,614; FY 04 $899,155; FY 05 $899,870; FY 06

$899,572; FY 07 (No-cost extension through 10/30/2008); FY 08 (No-cost extension through 1/30/

2009)

Abstract: The RERC on Accessible Medical Instrumentation: (1) increases knowledge of, access to,

and utilization of healthcare instrumentation and services by individuals with disabilities; (2) increases

awareness of and access to employment in the healthcare professions by individuals with disabilities;

and (3) serves as a national center of excellence for this priority topic area. Specific research projects

include: (1) needs analysis for people with disabilities as both recipients and providers of healthcare

services, and for manufacturers of healthcare instrumentation; (2) usability analyses to determine what

makes certain medical instrumentation either exemplary or problematic yet essential to healthcare

service delivery; (3) accessibility and universal usability analysis to identify classification and measurement approaches that could be used to explore metrics for accessibility of medical instrumentation; and

(4) policy analyses to explore how medical policies affect healthcare utilization and employment in the

healthcare professions of persons with disabilities. Specific development projects include: (1) development of tools for usability and accessibility analysis; (2) development of modified and new accessible

medical instrumentation; (3) monitoring of, and involvement in development of, emerging, accessible

healthcare technologies; and (4) development of design guidelines for accessible medical instrumentation and model policies for healthcare service delivery.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-29

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Fundamental Issues in Wayfinding Technologies

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

rerc@ski.org

www.ski.org/Rehab/JABrabyn_lab/General/wayfinding.html

Principal Investigator: John A. Brabyn, PhD 415/345-2110

Public Contact: Deborah Gilden, PhD 415/345-2000; Fax: 415/345-8455

Project Number: H133A060056

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 06 $449,872; FY 07 $449,954; FY 08 $449,952

Abstract: This project conducts a broad spectrum of research to strengthen the foundations of

wayfinding technology for assisting blind and visually impaired individuals to travel safely and independently. Rather than developing additional devices, this project addresses fundamental questions in

wayfinding technology research: What information do blind and visually impaired travelers really want

and need for safe independent travel? Why is there such an extreme range in navigational facility

within the visually impaired population? What are the upper limits of the information that can be

gained from traditional orientation and mobility training and environmental cues? How are the subtle

auditory cues affected in subpopulations with different types of hearing loss? How should wayfinding

performance, and barriers to it, be quantified so that future progress can be measured? What is the role

of advance travel planning? By pursuing answers to these fundamental questions rather than adding

more technology-driven devices to the existing selection, this research improves understanding about

the efficacy and optimal applications of navigation and travel technologies and techniques. This

provides a research-based foundation to inform and improve: (1) orientation and mobility instructional

strategies; (2) the design of new wayfinding technologies; and (3) future research.
3-30 NIDRR Program Directory FY 2008 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

North Carolina

Consortium for Assistive Technology Outcomes Research (CATOR) II

Duke University

Division of Speech Pathology and Audiology

DUMC-3888

Durham, NC 27710

frank.deruyter@duke.edu

www.AToutcomes.com

Principal Investigator: Frank DeRuyter, PhD

Public Contact: Jessica House 919/681-9983 (V); 919/684-6626 (TTY); Fax: 919/681-9984

Project Number: H133A060062

Start Date: January 01, 2007

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $449,994; FY 07 $449,995; FY 08 $449,995

Abstract: The Consortium for Assistive Technology Outcomes Research (CATOR-II), in collaboration with the RRTC on Measuring Rehabilitation Outcomes and Effectiveness and several other

NIDRR-funded programs, enhances understanding of the impact of AT on the lives of people with

disabilities by conducting a research project that systematically applies state-of-the-science measures of

AT interventions, outcomes, and data collections mechanisms. The purpose of this project is to improve the AT field’s ability to measure the impact of AT on the lives of people with mobility disabilities, with the potential to supplement or supplant the instruments and techniques available to researchers, service providers, and policy makers. Project R-1 produces a state-of-the-science instrument for

measuring outcomes for mobility AT devices based on applications of item response theory and computer adaptive testing. Project R-2 produces a state-of-the-science instrument for specifying and measuring key aspects of mobility AT treatment interventions, along with two consensually endorsed

classifications of mobility devices and services. Together, these products provide a foundation to

improve reporting of interventions in research publications and assess treatment fidelity in AT outcome

studies. Drawing on the advanced measures emanating from projects R-1 and R-2, Project R-3 uses an

experimentally controlled design to examine the conditions under which a change in assistance strategy, induced by a mobility AT intervention, enhances the functional performance, well-being, and

device satisfaction of stroke survivors and decreases the assistance being received from cohabitating

caregivers.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-31

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Pennsylvania

Information Technology for Independence: Community-Based

Research

University of Pittsburgh

6026 Forbes Tower

Pittsburgh, PA 15260

parmanto@pitt.edu

www.pitt.edu/~curbcut

Principal Investigator: Bambang Parmanto, PhD

Public Contact: 412/383-6649; Fax: 412/383-6655

Project Number: H133A021916

Start Date: January 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $299,945; FY 03 $299,534; FY 04 $299,945; FY 05 $299,384; FY 06

$298,903; FY 07 (No-cost extension through 12/31/2009); FY 08 (No-cost extension through 12/31/

2009)

Abstract: This project explores methods and technologies to mitigate barriers to computer and Internet

use encountered by people with visual impairments. These barriers include limited computer ownership and Internet availability, difficulty in obtaining and using accommodations for functional limitations (including cost issues), psychological barriers arising from inadequate coaching or mentoring, and

the limited accessibility of most websites to individuals with visual impairments. Accessibility can be

promoted through computer ownership, Internet availability, assistive technologies, and knowledgeably-staffed public computer stations, such as at independent living centers. Evaluation of these barriers and of identified accommodation strategies is the first research task of this project. Preceded by

focus groups and a widely-disseminated survey, the match of correct assistive device(s) to the individual and appropriate coaching and mentoring is tested at community-based computer laboratories.

The second research task is to develop and evaluate a new approach to Internet accessibility — a

Gateway server. This Gateway transforms the contents of any website, whatever its level of accessibility, into the most accessible format for each Internet user, as Google does for personal digital assistant

(PDA) users. The Gateway promotes Internet accessibility without requiring that commercial websites

follow promulgated guidelines or standards for users with disabilities, something that web developers

often seem to resist. Additionally, this project develops innovative metrics that enable the most rigorous

approach to the analysis of Internet accessibility and is conducting large-scale studies of different

topical categories of websites to measure progress in accessibility over time and identify the impact(s)

of new technologies.
3-32 NIDRR Program Directory FY 2008 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

ACCESS: Assisted Cognition in Community, Employment, and

Support Settings

University of Washington

Center on Human Development and Disability

Box 357920

Seattle, WA 98195

pabrown@u.washington.edu

cognitivetech.washington.edu

Principal Investigator: Kurt Johnson, PhD 206/543-3677

Public Contact: Pat Brown, EdD 206/616-3714; Fax: 206/543-4779

Project Number: H133A031739

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $297,127; FY 04 $299,171; FY 05 $298,764; FY 06 $299,949; FY 07

$299,964; FY 08 (No-cost extension through 03/31/2009)

Abstract: Project ACCESS investigates the use of assisted cognition as a tool for caregivers in supporting individuals with disabilities in living, working, and fully participating in community activities.

The use of assisted cognition devices has the potential to increase an individual’s independence and

decrease their reliance on the family/friend/caregiver network and community support staff. Devices in

development include the activity compass and the ADL Prompter. The activity compass meshes

several technologies (Palm Pilot, GPS receiver, and wireless modem). Over time, the device learns a

user’s typical daily routines, monitors for variations, and then decides whether a prompt is necessary

when a routine is unexpectedly changed. The ADL prompter monitors data collected by sensors

embedded in a living or work environment. Using artificial intelligence software, the data from these

sensors are interpreted and decisions made based upon the needs of the user. Although initially designed for people with Alzheimer’s, these devices have applications as support tools for caregivers and

people with disabilities since they potentially support “distributed caregiving” wherein the caregiver or

family member monitors, prompts, and/or supports from a distance.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-33

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Accessible Location Information Delivered via GPS Cell Phone for

People with Visual Impairments

Sendero Group, LLC

429 F Street

Davis, CA 95616

mikemay@senderogroup.com

www.wayfinding.org

Principal Investigator: Michael May

Public Contact: 530/757-6800; Fax: 530/757-6830

Project Number: H133G060035

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 06 $149,435; FY 07 $149,801; FY 08 $149,172

Abstract: This project develops an accessible GPS cell phone, which provides critical information

about businesses, addresses, distances, and routes, thereby greatly augmenting the personal mobility of

a traveler who is blind or visually impaired. Specific activities include integrating the existing accessible GPS innovations with “smart” cell phone technology. The marriage of GPS and cell phones

exists in the general market but it is screen-based with a graphical interface rendering it completely

inaccessible for blind and visually impaired individuals. Developing an interface to meet the needs of

the nation’s blind and visually impaired travelers, i.e. translating the visual information into spoken

text, is a central focus of this project. A consortium of three organizations with investigators from

research centers and industry collaborate on this project. The consortium systematically evaluates

project activities. Dissemination via various avenues includes conferences, webcasts/online discussions, end user lists, various media outlets, and presentations. The end result of this project is to provide a commercially available talking GPS cell phone.
3-34 NIDRR Program Directory FY 2008 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Delaware

Multimodal Access to Information Graphics

University of Delaware

Electrical and Computer Engineering Department

140 Evans Hall

Newark, DE 19716

barner@ee.udel.edu

www.ece.udel.edu/~barner

Principal Investigator: Kenneth Barner, PhD

Public Contact: 302/831-6937; Fax: 302/831-4316

Project Number: H133G080047

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 08 $199,975

Abstract: This project addresses the accessibility of a specific class of graphics, referred to as information graphics, that consist of bar charts, pie charts, line graphs, etc. Although information graphics

comprise only a subset of graphics-based information, they are prevalent in information resources and

constitute a set of sufficiently similarly characterized graphics to enable automated processing. To

address the accessibility of this class of graphics, this project develops a system for automatically

generating multimodal representations of information graphics. The multimodal representations consist

of automatically generated tactile graphics and automatically generated textual summaries designed to

convey the intended core message of the graphic. This development is based on the latest research in

the image processing, computer vision, statistical inference, natural language understanding, processing, and generation, as well as universal design and human computer interaction. The multimodal

information graphic system (MIGS) is developed to work directly with existing tactile printers and

Braille/synthesized speech output methods; and provides users with visual impairments, as well as

others benefiting from multimodal displays, greater independent access to the proliferating body of

information graphics. This project determines the optimal tactile graphic design methods and optimal

text-base summarization approach based on preferences of potential users of the MIGS system, and

evaluates MIGS component effectiveness in providing access to graphical information.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-35

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

District of Columbia

Accessible Digital Radio Broadcast Services

National Public Radio

NPR Labs

635 Massachusetts Avenue NW

Washington, DC 20001-3753

mstarling@npr.org

www.nprlabs.org

Principal Investigator: Mike Starling

Public Contact: 202/513-2484; Fax: 202/513-3024

Project Number: H133G060187

Start Date: October 01, 2006

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 06 $150,000; FY 07 $150,000; FY 08 $150,000

Other Funding: FY 07 $25,000 Harris Corporation; FY 08 $25,000 Harris Corporation

Abstract: In this project, National Public Radio (NPR) and its partners prototype, field test, and assess

the most appropriate technologies, service models, and operational techniques in the accessible design

of mass-market digital radio services to better serve consumers with sensory disabilities. This work

produces best practice demonstrations and service options with strong prospects for mass-market

adoption within digital radio services and receivers, options that model how digital radio can provide:

mainstreamed digital reading radio services; live video description synchronized to broadcast; buffering

for rewind/replay/catch-up to aid comprehensibility; accessible controls, displays, and menu options on

digital radio receivers; and caption displays of audio on digital radio receivers or ancillary displays.

Best practice demonstrations and service options benefit from iterative and comprehensive user evaluations led by research experts. Furthermore, NPR and its partners have extensive collaborative relationships within the industry that ensure widespread impact on products and services available to people

with sensory disabilities.
3-36 NIDRR Program Directory FY 2008 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

District of Columbia

An Automatic Fitting Algorithm for Cochlear Implant

Gallaudet University

Department of Hearing, Speech, and Language Sciences

800 Florida Avenue, NE

Washington, DC 20002

matthew.bakke@gallaudet.edu

www.hearingresearch.org

Principal Investigator: Matthew H. Bakke, PhD

Public Contact: 202/651-5335 (V/TTY); Fax: 202/651-5324

Project Number: H133G060065

Start Date: October 01, 2006

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $146,562; FY 07 $149,533; FY 08 $149,895

Abstract: The purpose of this study is to design and evaluate an automatic cochlear implant fitting

algorithm based on a paired comparison adaptive approach to guide audiologists in choosing the best

frequency allocation for the individual client. Frequency allocation can impact speech recognition

abilities and in turn communication. This work entails a systematic search for an optimum frequency

allocation using a modified Simplex procedure. This study consists of three experiments. One is the

discrimination of frequency analysis band wherein minimally detectable differences in frequency shifts

along the electrode array are identified. In the second experiment, subjects are computer-guided to

search for an optimal frequency allocation among cells in a matrix, with the results from experiment

one defining the cell content. The third experiment, the speech battery test, consists of speech perception experiments with the new map using nonsense syllable, phoneme, and sentence stimuli. Experiment 2 and experiment 3 are recursively conducted until the results converge with up to six sessions

per subject required to finish the experiment. During the subject’s first and last visits, he/she completes

the Communication Profile for the Hearing Impaired (CPHI) and a questionnaire similar to the Abbreviated Profile of Hearing Aid Benefit (APHAB). Four normal hearing native English speakers evaluate the experimental procedure and the speech processing algorithm. Fifteen post-linguistically deafened Nucleus 24 cochlear implant users complete the study.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-37

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

District of Columbia

Personal Audio Information Service

National Public Radio

NPR Labs

635 Massachusetts Avenue NW

Washington, DC 20001-3753

mstarling@npr.org

www.nprlabs.org

Principal Investigator: Mike Starling; Ellyn Sheffield, PhD

Public Contact: 202/513-2484; Fax: 202/513-3024

Project Number: H133G070093

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 07 $200,000; FY 08 $200,000

Abstract: This project defines and demonstrates a Personal Audio Information Service (PAIS) - a new

mainstream system that expands the lifeline services currently offered to people with visual impairments through audio information services (AIS) by automatically assembling a selection of locally

relevant, customized audio content from current AIS broadcasts. The PAIS system combines the

established framework of audio information services with the new programming flexibility that is

afforded by HD Radio (the new FCC standard for digital radio broadcasting), creating a powerful ondemand radio system that will substantially improve media access for millions of American consumers

with print disabilities. The project: (1) develops efficient audio interfaces for selecting, navigating, and

listening to content; (2) develops effective systems for tagging, subdividing, and collecting topic-based

content; (3) develops and demonstrates a full scale PAIS system in a real world broadcast pilot; and (4)

documents and publishes recommended best operating practices for audio information service providers and consumer electronics manufacturers to fully deploy PAIS technologies.
3-38 NIDRR Program Directory FY 2008 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

Inclusive Indoor Play

Georgia Tech Research Corporation

Georgia Institute of Technology, College of Architecture

505 Tenth Street

Atlanta, GA 30332

abir.mullick@coa.gatech.edu

Principal Investigator: Abir Mullick

Public Contact: 404/385-7210

Project Number: H133G040324

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000; FY 07 (No-cost extension

through 5/31/2008); FY 08 (No-cost extension through 5/31/2009)

Abstract: The purpose of this project is to research indoor play environments, develop universal

design play guidelines, and design models of play environments that are safe and accessible to all

children. This project: (1) conducts basic research and develops universal design guidelines for indoor

play; (2) designs, develops, and tests models of inclusive indoor play environments that promote the

highest level of safety, usability, accessibility, and social interaction; and (3) constructs and tests a

working prototype of an indoor play environment that demonstrates highest level of access for all

children. It researches play and the play environment through literature review, existing products,

existing play environments, focus group interviews with participants, expert consultations, children’s

play designs, and testing of full-scale simulated play environments. The second year of this project

focuses on development of design concepts, construction of refined design in full scale, and testing

with users. The final year of this project is dedicated to prototype construction and testing.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-39

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

Workplace Accommodation Wizard: An Assessment and

Accommodation Tool for Employers

Georgia Institute of Technologyÿ:

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

workrerc@coa.gatech.edu

www.workrerc.org

Principal Investigator: Karen Milchus 404/894-0393

Public Contact: 800/726-9119404/894-1414; Fax: 404/894-9320

Project Number: H133G070063

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 07 $196,460; FY 08 $199,801

Abstract: The purpose of this project is to develop the Workplace Accommodation Wizard that

enables human resource personnel to identify employees’ needs and solutions for workplace accommodations. The Wizard includes both an employer-driven assessment tool and a rule-based system for

using the assessment information to identify specific accommodations from assistivetech.net, the

national public internet site on Assistive Technology (AT), which contains information on over 18,000

AT products. Development of the Workplace Assessment Wizard includes: (1) creation of the assessment protocol; (2) evaluation and revision of the protocol; (3) development of the rule set; (4) development of the web application; and (5) product testing and revision of content, usability, and accessibility.

This workplace-specific assessment tool combined with a comprehensive database of AT enables

human resource personnel in a variety of employment sectors to conduct a workplace assessment, find

potential accommodations, read reviews of those accommodations, and find links to specific products.
3-40 NIDRR Program Directory FY 2008 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Web-Based Treatment for Aphasia

Rehabilitation Institute Research Corporation

Center for Aphasia Research

345 East Superior Street, Room 1353A

Chicago, IL 60611

lcherney@ric.org

Principal Investigator: Leora R. Cherney, PhD

Public Contact: 312/238-1117; Fax: 312/238-2208

Project Number: H133G060055

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $146,316; FY 07 $145,529; FY 08 $149,932

Abstract: This project conducts a randomized clinical trial to develop and implement an innovative,

broadband, web-based treatment program for individuals with chronic aphasia, and evaluates its

efficacy and cost-effectiveness. The treatment, Oral Reading for Language in Aphasia (ORLA), is

based on a theoretical framework that incorporates two lines of work: the neuropsychological models

of reading and observation-execution-matching. The treatment has been computerized and the current

version of ORLA uses state-of-the-art virtual therapist technology that allows the individual with

aphasia to read aloud, and ultimately speak, sentences at the same time as the words are produced by a

perceptive, life-like, animated computer agent, using visible speech. In this clinical trial, ORLA treatment is delivered via the Internet and outcomes are compared to a placebo computer treatment.

Twenty-five individuals with chronic aphasia (at least 12 months post onset) are randomized to one of

two groups: oral reading treatment group and a control group in which subjects participate in nonlanguage computer activities. Both groups practice for nine hours per week and treatment continues for

a six-week period of time. Language and communication skills are evaluated pretreatment, immediately post-treatment, and at six weeks after the end of treatment to assess maintenance effects. The

primary outcome measure is the Aphasia Quotient of the Western Aphasia Battery. Additionally,

secondary outcome measures have been selected with consideration of the ICFDH-2 categories of

body structure/function, activity, and participation, and include a variety of standard aphasia tests as

well as quality of life indices.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-41

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Overcoming Gravity Induced Arm and Hand Dysfunction to Restore

Functional Reaching Following Stroke

Northwestern University

Department of Physical Therapy and Human Movement Sciences

645 North Michigan Avenue, Suite 1100

Chicago, IL 60611

j-dewald@northwestern.edu

dewaldlab.com/

Principal Investigator: Julius Dewald, PT, PhD 312/908-6788

Public Contact: 312/908-6788; Fax: 312/908-0741

Project Number: H133G070089

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 07 $195,867; FY 08 $194,252

Abstract: This study uses a 3-D force-controlled robot to test whether electrical stimulation of extensor muscles can overcome the associated abnormal flexor activity of the elbow, wrist, and fingers

during reaching under progressively larger gravitational loads. Furthermore, if indeed wrist and finger

flexors can be overpowered, this study determines if a multi-electrode array can be implemented to

selectively stimulate wrist extensors independently of finger extensors during the same reaching

conditions. Selective stimulation, if successful, would increase the functional repertoire of the hand and

enhance the quality of life of stroke survivors. To support the fundamental premise that abnormal

flexor activity exists in individuals with stroke, the project measures the progressive increase in abnormal wrist and finger flexion associated with supporting increasing amounts of the upper limb’s weight.

This is accomplished by using a 3-D force-controlled robot to virtually manipulate the amount of

gravity experienced during reaching in 45 chronic stroke survivors (aim 1). Next, the project quantifies

the impact of electrical stimulation of the elbow, wrist, and finger extensors on elbow, wrist, and finger

extension range of motion when progressively increasing the weight of the paretic limb with the robot

during reaching (aim 2). Finally, the project investigates the application of an existing multi-electrode

stimulation array to determine if wrist and finger extensors can be selectively stimulated (aim 3).
3-42 NIDRR Program Directory FY 2008 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Video Gaming Technology to Promote Health and Fitness Among

Adolescents with Disabilities

University of Illinois at Chicago

Institute on Disability and Human Development

1640 West Roosevelt Road, Suite 713

Chicago, IL 60608

Principal Investigator: Jennifer Rowland

Public Contact: 312/413-1850

Project Number: H133G080120

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 08 $183,463

Abstract: This project adapts active video games for use by youth with physical disabilities, and

assesses their feasibility and effectiveness as an exercise modality for increasing energy expenditure

and improving cardiorespiratory fitness. The study is conducted in three phases: Phase I: Adaptation

and Feasibility Testing; Phase II: Dose-Response Energy Expenditure; and Phase III: Cardiorespiratory

Fitness Trial. In Phase I, adaptations are implemented that allow youth with disabilities to play active

video games using upper extremity movement to participate in the games. The accessibility and safety

of these adaptations is assessed through pilot testing, and, if necessary, modifications to the adapted

video games are made based on participant feedback and observation. Researchers collect exercise

intensity data associated with various games designed for both EyeToyTM (ET) and Dance, Dance

Revolution(TM) (DDR) devices. These data are used to classify specific games into mild, moderate,

and vigorous activity. Phase II examines the dose-response relationship between energy expenditure

and exercise intensity for both active video games and a standard exercise modality for individuals

with disabilities (arm cycling). Participants complete energy expenditure assessments for three levels of

intensity (mild, moderate, and vigorous) for each exercise modality (arm cycling, DDR, and ET).

Phase III is a randomized controlled trial examining the effects of active video games compared to arm

cycling and normal activity controls in improving cardiorespiratory fitness in adolescent manual

wheelchair users. Participants in both intervention groups will take part in a 10-week, 3 days/week

exercise training program designed to increase aerobic capacity. Primary outcome measures include

cardiorespiratory fitness, energy expenditure, and satisfaction with physical activity.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-43

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Maryland

Optimized Hands-Free Speech Recognition

UMBC

Information Systems Department

1000 Hilltop Circle

Baltimore, MD 21250

asears@umbc.edu

Principal Investigator: Andrew Sears, PhD

Public Contact: 410/455-3883; Fax: 410/455-1531

Project Number: H133G050354

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 05 $149,882; FY 06 $149,997; FY 07 $149,774; FY 08 (No-cost extension

through 11/30/2009)

Abstract: The goal of this project is to take the collected hands-free speech recognition scientific

knowledge and interface solutions, which have been individually developed and proven, and incorporate those into a commercially available user interface software product. The project follows an iterative user centered design process whose three main phases correspond roughly to the three years of the

project. In phase 1, past research results are incorporated into a prototype design, which undergoes

usability testing in the lab. In phase 2, an “alpha” version of the product is placed in a small number of

users’ homes and/or offices, where they use the prototype for up to six months and keep a diary of

their experiences. In phase 3, a “beta” version of the software is tested by a larger number of users over

a period of six months. In this trial the users are subject to surveys regarding ease-of-use, and they and

the developers participate in an open online discussion/feedback forum for users. The end of phase 3

includes a final refinement of the product and evaluations of the performance of the new software

product, and (for marketing purposes) a comparison of performance of the hands-free implementations

of speech recognition software commercially available at that time. This project culminates with

“Version 1.0” which will be made available to the general public.
3-44 NIDRR Program Directory FY 2008 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Access to Locally Televised On-Screen Information: Auditory

Messaging and Captions During Emergency Broadcasts

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134-1008

access@wgbh.org

www.wgbh.org/ncam

Principal Investigator: Geoff Freed 617/300-3700

Public Contact: Mary Watkins 617/300-3700; Fax: 617/300-1020

Project Number: H133G050278

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 05 $150,000; FY 06 $150,000; FY 07 $150,000; FY 08 (No-cost extension

through 9/30/2009)

Abstract: This project explores and prototypes digital television (DTV) solutions that enable local

television stations to send messages, warnings, and alerts that meet the communication needs of people

with sensory disabilities. Specifically, NCAM researches and develops systems and procedures that

enable real-time processing and conversion of on-screen text crawls into speech output. Utilizing offthe-shelf speech synthesizers, WGBH works with broadcast stations to prototype methods of processing text entered into broadcast graphics systems into speech output that can then be made available via

the secondary audio program (SAP) channel or auxiliary DTV audio channels. The project also

develops systems and procedures that address display conflicts between captions and on-screen graphics by developing methods of tagging and prioritizing text and graphics messages within automated

display systems.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-45

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Captioning Solutions for Handheld Media and Mobile Devices

Development

WGBH Educational Foundation

National Center for Accessible Media

One Guest Street

Boston, MA 02135

access@wgbh.org

www.wgbh.org/ncam

Principal Investigator: Geoff Freed 617/300-3700

Public Contact: Mary Watkins 617/300-3700; Fax: 617/300-1020

Project Number: H133G070122

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 07 $200,000; FY 08 $200,000

Abstract: This project explores barriers to portable media for deaf and hard-of-hearing users and

develops captioning solutions that serve as models for the mobile media and technology industries and

for public policy developers. The project team identifies, tests, and prototypes required accessibility

changes in mobile media production tools, formats, transport mechanisms, and display technologies.

Prototypes model technical solutions for packaging, compression, identification, retrieval, download,

processing, and porting of captioned video to portable devices. Prototypes also model mobile caption

display options and explore customization capabilities. Consumers who are deaf or hard-of-hearing

participate in end-user testing to evaluate the usability of project solutions. Project deliverables include:

(1) prototypes that model multiple methods of creating, distributing, downloading, and displaying

captioned content on handheld devices; (2) publication of usability research on accessible interface and

caption display options; and (3) comprehensive functional requirements that detail production processes and software and hardware enhancements required for content creators, service providers, and

third party tool developers to create and transcode captions and caption feature sets and capabilities

required for open as well as proprietary mobile media formats and device-specific players to render

captions.
3-46 NIDRR Program Directory FY 2008 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Caption Accuracy Metrics Development Project

WGBH Educational Foundation

WGBH-Carl and Ruth Shapiro Family

National Center for Accessible Media

One Guest Street

Boston, MA 02135

ncam@wgbh.org

ncam.wgbh.org

Principal Investigator: Marcia Brooks

Public Contact: 617/300-3431; Fax: 617/300-1035

Project Number: H133G080093

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 08 $200,000

Abstract: This project utilizes language-processing tools to develop an automated caption accuracy

assessment system for real-time captions for live news programming as well as classroom-based

communication access real-time translation (CART) captioning. Additionally, this project researches

whether text-based data mining and automatic speech recognition technologies can produce meaningful data about stenocaption accuracy that meets the need for caption performance metrics. Advisors

include the National Institute of Standards and Technology, IBM, Nuance, the Massachusetts Institute

of Technology, Gallaudet University, and the National Technical Institute for the Deaf. Prototypes are

reviewed by major stakeholders at Technical Review Meetings. Iterative tests and modifications within

major stenocaption and broadcast operations facilities provide real-world assessments of the system’s

ability to produce meaningful caption accuracy metrics. A reliable performance measurement tool that

can analyze the quality of real-time captioning, developed with input from industry leaders, deaf

education experts, and the Federal National Institute of Standards and Technology, provides Congress

and the FCC with much-needed, independently verified data to establish caption accuracy requirements, and greatly improves the ability of the television community to monitor and maintain the quality

of live captioning they offer to viewers who are deaf or hard of hearing.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-47

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Minimal Classroom Requirements for Optimal Acoustic Access to

Speech by Children with and Without Hearing Loss

Clarke School for the Deaf

47 Round Hill Road

Northampton, MA 01060-2199

figlehart@clarkeschool.org

Principal Investigator: Frank Iglehart, PhD

Public Contact: 413/584-3450; Fax: 413/582-1187

Project Number: H133G060116

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 06 $68,869; FY 07 $51,122; FY 08 $56,282

Abstract: The purpose of this project is to measure the effects of classroom noise and reverberation on

speech perception by children with varying degrees of hearing loss and of different ages. The effects of

speech-to-noise ratio (0 dBA S/N, +10 dBA S/N, and +20 dBA S/N) and reverberation (RT = 0.25,

0.50 and 1.0s) on sentence-level speech perception are measured as functions of age (5-16 years) and

degree of hearing loss (mild to profound). Normative data is also collected, as a function of age, on

children with typical hearing. This project addresses several questions: (1) What limits on noise and

reverberation are required for optimal speech perception by children with hearing loss? (2) Can the

need for access to speech among children with different degrees of hearing loss be met with a single

set of criteria for classroom acoustics? (3) To what extent do these criteria vary with age among children with typical hearing and those with hearing loss?
3-48 NIDRR Program Directory FY 2008 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Jersey

Improved Weight Bearing Evaluation of Knee Osteoarthritis

Kessler Medical Rehabilitation Research and Education Center (KMRREC)

Division of Rehabilitation Engineering

1199 Pleasant Valley Way

West Orange, NJ 07052

pbarrance@kmrrec.org

Principal Investigator: Peter Barrance, PhD

Public Contact: 973/324-3550; Fax: 973/243-6984

Project Number: H133G080136

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $199,964

Abstract: The objective of this project is to develop refined upright MRI imaging and computer

modeling methods that allow assessment of patients with osteoarthritis (OA) during weight bearing. To

optimize available non-surgical OA treatments, refined imaging methods are needed to measure

changes in knee positioning and cartilage contact while weight bearing. The project builds on pilot

work that demonstrated the ability to derive quantitative measures of cartilage contact positioning from

weight bearing MRI images. Three specific focus areas for development are: (1) to develop a more

efficient and accurate method for positioning patients with symptomatic knee OA and determine the

limits of duration for weight bearing MRI scanning; (2) to improve and expand methods for maintaining consistent measurement reference frames through changing positions and loading conditions; and

(3) to expand capabilities needed to describe contact area and cartilage depth at the contact sites.

Researchers validate the methodological developments using laboratory experiments and a study with

OA patients when lateral wedge insoles are prescribed to relieve loading of the knee’s medial compartment.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-49

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Web-based Student Processes at Community Colleges – Tools for

Ensuring Accessibility

Cornell University

Employment and Disability Institute

School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853

smb23@cornell.edu

edi.cornell.edu

Principal Investigator: Susanne Bruyère, PhD

Public Contact: 607/255-9536 (V); 607/255-2891 (TTY); Fax: 607/255-2763

Project Number: H133G040255

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000; FY 07 (No-cost extension

through 10/31/2008)

Abstract: Web-based processes (such as student recruitment, information dissemination, applications,

course registrations, and online coursework) have become increasingly important to the way postsecondary educational institutions communicate and interact with their potential and enrolled student

populations. This project focuses on the accessibility and usability of community college web sites. In

the first year, a multi-method approach is used to examine the state of web accessibility and identify

accessibility barriers for students with disabilities and ways to address them. The researchers conduct

an accessibility evaluation of selected web pages, including the online application process, in 30

community colleges. A subset of these sites undergo further usability testing by individuals with visual

and reading based learning disabilities. The focus of the Year Two research is a national survey of

nearly 700 community colleges regarding their use of web-based/online student recruitment, application, and registration processes and the colleges’ awareness of web accessibility issues and policies

regarding accessibility. A web based Accessibility Toolkit has been developed

(www.webaccesstoolkit.org ) based on the results of this research. The toolkit is designed to inform

community college administrators, webmasters and disability services professionals and others about

the barriers web inaccessibility can pose to students with visual and learning disabilities. It provides

information on ways to identify and address these barriers on their college website. The toolkit website

contains a variety of information and resources including: training materials, checklists and links to

useful resources to help colleges understand, evaluate and promote equal access to campus web

resources. The project is a collaborative effort between EDI and Cornell University’s Institute for

Community College Development (ICCD).
3-50 NIDRR Program Directory FY 2008 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

North Carolina

Micromachined Braille Reader

North Carolina State University

2410 Campus Shore Drive, MRC 443

Raleigh, NC 27695-7514

Principal Investigator: Paul D. Franzon

Public Contact: 919/515-7351; Fax: 919/515-2285

Project Number: H133G070135

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 07 $199,446; FY 08 $199,083

Abstract: This project develops a low-cost, portable Braille display utilizing Polyvinylidene Floride

(PVDF), an electro-active polymer, to create a novel, low-power, low-voltage bistable actuator. The

dots in this display are produced with more force and are easier to read. By using PVDF and silicon

micromachining techniques, there is the potential for each Braille cell to cost $5 or less, as compared to

about $35 for the current commercial offerings. This display should use less power, be cheaper to

make, require a lower actuation voltage (thus reducing the size and cost of the control electronics), and

be easier to scale to more letters than other current prototypes.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-51

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

North Carolina

Universal Design of Tactile Exhibits with Touch Activated Descriptive

Audio for Aquariums

RAF Models & Displays

111 Cascade Avenue

Winston-Salem, NC 27127

rafmodels@triad.rr.com

Principal Investigator: Rebecca Fuller

Public Contact: 336/722-4250

Project Number: H133G060284

Start Date: October 01, 2006

Length: 36 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 06 $138,740; FY 07 $144,440; FY 08 $143,060

Abstract: The purpose of this project is to develop strategies and technologies that enhance the learning opportunities at aquariums for people who are blind or low vision (B/LV). The project evaluates

current aquarium exhibit strategies related to an interpretive program and assesses barriers for people

who are B/LV that functionally limit their participation in the critical learning opportunities extended to

the general public. The project identifies and develops universal design best practice strategies and

methodologies that enhance social integration and access to exhibit and interpretive information for

persons who are B/LV. The project develops cost effective technologies to couple a user-directed

tactile experience with audio descriptive information for aquarium exhibits. The project emphasizes

methodologies that emphasize user involvement by persons who are B/LV in the design and evaluation

of prototypical designs for aquariums.
3-52 NIDRR Program Directory FY 2008 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

A Means of Expression: Online Communication Assessment to Improve

Outcomes for Individuals with Severe Disabilities

Oregon Health and Science University

707 SW Gaines Road, PO Box 574

Portland, OR 97207

rowlandc@ohsu.edu

www.communicationmatrix.org

Principal Investigator: Charity Rowland, PhD

Public Contact: 503/494-2263; Fax: 503/494-2859

Project Number: H133G070129

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 07 $200,000; FY 08 $200,000

Abstract: This project adapts, refines, evaluates, and markets an innovative technological online tool

designed to provide appropriate assessment of communication skills for individuals with severe disabilities. The novel tool harnesses the potential of an online communication assessment protocol to

achieve immediate and meaningful individual-level outcomes in the form of cost effective and appropriate assessment, generation of appropriate educational and therapeutic goals, and monitoring of

progress. The online tool is a prototype online assessment tool for evaluating the communication skills

of individuals at the earliest stages of communication and is based on the valid and reliable Communication Matrix. The new tool is designed to be used by caregivers and professionals. This project

involves the adaptation, improvement, and expansion of this website to increase its usability and

educational utility, including alpha and beta testing and four major evaluation studies.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-53

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Systematic Study of the Effectiveness of AAC Intervention to Improve

Conversation in Individuals with Degenerative Language Disorders

Oregon Health and Science University

3181 SW Sam Jackson Park Road

Portland, OR 97239

friedm@ohsu.edu

Principal Investigator: Melanie Fried-Oken, PhD 503/494-7587

Public Contact: 503/494-2619

Project Number: H133G080162

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $200,000

Abstract: This project continues previous research in alternative and augmentative communication

(AAC) tool use for adults with primary progressive aphasia (PPA) resulting from frontotemporal lobar

dementia. Project objectives include: (1) to test the extent to which AAC intervention is associated

with changes in conversation for persons with moderate Alzheimer’s disease and persons with primary

progressive aphasia under controlled conditions; (2) to test the extent to which AAC use is associated

with daily functional changes in conversation for the two participant groups under natural conditions;

and (3) to describe the behavioral and socio-relational characteristics of caregiver/partners and participants who display improved conversational skills with AAC treatment. Research is conducted with

100 adults from the Alzheimer’s Disease Research Centers in Portland, OR and San Francisco, CA.

AAC devices are customized for each participant with specific vocabulary depicting autobiographical

memories and functional activities. Each participant engages in a spaced retrieval priming task followed by videotaped conversations with and without the AAC device in six controlled conversations

with a research assistant (Study 1), and six practical context conversations with a caregiver (Study 2).

Spontaneous AAC device use in the home is tracked for six months following Study 2 conversations.

This project provides scientific data that influences management guidelines to improve daily conversational functioning of persons with degenerative language loss secondary to moderate Alzheimer’s

disease and PPA so that they may: (1) express their own needs and desires; (2) reduce care giving costs

by facilitating communication between caregivers and their charges; and (3) increase quality of life for

both caregivers and their charges with dementia.
3-54 NIDRR Program Directory FY 2008 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Tennessee

Appropriate Directional Hearing Aid Switching in School Age Children

Vanderbilt University School of Medicine

Vanderbilt Bill Wilkerson Center for Otolaryngology and Communication Sciences

1215 21st Avenue South, Room 8310

Nashville, TN 37232-8242

todd.a.ricketts@vanderbilt.edu

Principal Investigator: Todd A. Ricketts, PhD

Public Contact: 615/936-5258; Fax: 615/936-5013

Project Number: H133G060012

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 06 $150,000; FY 07 $150,000; FY 08 $147,564

Abstract: Some children are being deprived of important speech information as a result of hearing loss

and the high levels of classroom noise that are normally present. Traditional hearing aids are able to

counteract many of the difficulties of understanding speech but high levels of classroom ambient noise

remain a significant problem. Recent data have shown significant benefit from directional hearing aids

for children across a wide range of noisy school environments. However, it has also been established

that the directional mode maybe undesirable in other listening situations, necessitating appropriate

switching between directional and omnidirectional microphone modes to ensure optimum speech

recognition. Unfortunately, it is not known how often and in what environments the hearing aid’s

microphone mode needs to be switched at school to maintain optimum speech recognition and whether

children can be trained to switch appropriately between directional and omnidirectional modes. In lieu

of appropriate manual switching, it is not known if “state-of-the-art” automatic microphone-switching

hearing aids will switch appropriately in many school environments. An “asymmetric” fitting scheme

(directional in one ear and omnidirectional in the other) has been proposed as a possible alternative to

both manual and automatic switching in adult listeners. It is unknown whether this asymmetric fitting

will be a reasonable alternative for children. The purpose of this project is to answer these questions

through a series of three investigations. These investigations include: (1) quantification of school

environments with regards to the most appropriate microphone mode (directional, omnidirectional,

either); (2) quantification of appropriate switching of both automatic and manual directional switching

systems in school environments as a function of age, and (3) quantification of speech recognition

across a range of school listening environments for asymmetric and traditional symmetric microphone

fittings (both automatic and manually switched).
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-55

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Functional Effects of Bifocal Use: Implications for Falling Interventions

University of Wisconsin/Milwaukee

Rehabilitation Research Design and Disability Center

College of Health Sciences

P.O. Box 413

Milwaukee, WI 53201-0413

Principal Investigator: Roger O. Smith, PhD; Kathy Rust, MS; 414/229-5625

Public Contact: 414/229-6803 (V); 414/229-5628 (TTY); Fax: 414/229-6843

Project Number: H133G050340

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 05 $149,999; FY 06 $149,950; FY 07 $149,928; FY 08 (No-cost extension

through 9/30/2009)

Abstract: This project directs an integrated set of research activities to address a seriously under

considered factor in falls research, the use of bifocal lenses. Falls and fall-related injury among elders

are a widely documented public health problem causing decreased function, suffering, increased health

care costs, and even morbity and mortality among older persons. Five primary goals are identified for

this study: 1) measure outcomes of bifocal use; 2) understand the process of adaptation to new bifocals;

3) explore brain function as a potential explanatory variable; 4) draft recommendations for clinical

practice and design, and: 5) disseminate scientific papers and presentations to inform research, device

development, and practice. Two strategies to address these goals. For 60 healthy adults with new

bifocal lenses, Phase 1 replicates previously established dependent measures and adds a measure of

functional mobility in a longitudinal design. Phase 2 employs functional MRI in new bifocal users over

their period of adaptation. While the paradigm is designed, specific parameters for Phase 2 is revised

from analysis of Phase 1 data. The work from this project is disseminated through refereed presentations at major conferences and professional publications. Technical reports, as appropriate, will be

posted on the R2D2 website.
3-56 NIDRR Program Directory FY 2008 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Development of Dynamic Pedorthosis for Improving Clubfoot

Correction

Medical College of Wisconsin

Department of Orthopaedic Surgery

PO Box 1997, Suite C360

Milwaukee, WI 53201

xcliu@mcw.edu

Principal Investigator: Xue-Cheng Liu, PhD

Public Contact: 414/337-7323; Fax: 414/337-7337

Project Number: H133G060142

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $150,000; FY 07 $150,000; FY 08 $150,000

Abstract: The purpose of this development project is to use advanced technologies to establish a new

process to develop a customized dynamic pedorthosis for children with clubfoot. Researchers evaluate

children with and without clubfoot to obtain dynamic plantar pressure using EMED Pressure System

and three dimensional geometry from X-ray or CT scan. Based on this information, a computer model

of the dynamic pedorthosis is developed using computer-aided design (CAD) and finite element

modeling (FEM). The analysis of FEM simulates walking with different percentage of body weight.

The customized CAD model is used to construct a negative mold of the pedorthosis using Solid

Freeform Fabrication, a rapid prototyping technique. Next, the pedorthosis is constructed from the

negative mold. Each customized pedorthosis constructed using this approach will have different

material inserts as required to correct the abnormal plantar pressure resulting from the clubfoot deformity. Finally, five patients with their customized dynamic pedorthosis are followed clinically including

X-ray, in-sole plantar pressure distribution study, and functional outcome analysis. This information is

used to evaluate the pedorthosis for reliability and effectiveness, and if needed, used to modify the

current pedorthosis.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-57

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Clinical Reliability and Validity of a Foot Model: Assessing Efficacy

and Functional Outcome with Orthotic Intervention in Children with

Cerebral Palsy

Medical College of Wisconsin

Department of Orthopaedic Surgery

PO Box 1997, Suite C360

Milwaukee, WI 53201

xcliu@mcw.edu

Principal Investigator: Xue-Cheng Liu, PhD

Public Contact: 414/337-7323; Fax: 414/337-7337

Project Number: H133G060155

Start Date: January 01, 2007

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $150,000; FY 07 $150,000; FY 08 $150,000

Abstract: Equinovalgus and equinovarus are the most common foot and ankle abnormalities reported

in children with cerebral palsy (CP). Orthotic intervention is frequently prescribed for children with CP

to improve their standing, walking, and every day function. However, limited evidence exists to

support the impact of these devices to prevent deformities or improve function. Specifically, no longterm functional outcome studies support use of different orthoses recommended by existing foot

models. This study first validates a six-segment-foot model with MRI data and assesses clinical reliability of the model with physical examination and video-taped observational gait analyses in children with

CP. Second, this study assesses the efficacy of four types of orthoses and determines their benefits

following a two year period, using the six-segment-foot model, Gross Motor Function Measure, and

Pediatric Evaluation of Disability Inventory.
3-58 NIDRR Program Directory FY 2008 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Colorado

Development and Evaluation of a Location-Based Multimedia System

for Providing Access to Information in Community Settings

AbleLink Technologies, Inc.

618 North Nevada Avenue

Colorado Springs, CO 80903-1158

steve@ablelinktech.com

www.ablelinktech.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S080044

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 08 $75,000

Abstract: This project develops a location-based method for improving access to information in the

community (i.e.: public places such as parks, zoos, bus station and stops, information kiosks, tourist

attractions, and other places of public accommodation) that is not solely in text format. This project

addresses the need for alternative formats by designing, developing, and testing a Pocket PC-based

software system that uses GPS signals to load and deliver location-based, personalized multimedia

information content to individuals with intellectual and other disabilities. Potential applications for

persons with disabilities include two primary areas: (1) families, schools, agencies, and programs that

provide community-based training and services to individuals with intellectual and other disabilities;

and (2) places of public accommodation that provide information to the public about their services or

facilities and have obligations to make such information accessible to people with disabilities.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-59

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Colorado

Development and Evaluation of a Universal Design Multimedia

Approach to Enable Autonomous Composition by Students and Adults

with Intellectual Disabilities

AbleLink Technologies, Inc.

618 North Nevada Avenue

Colorado Springs, CO 80903

steve@ablelinktech.com

www.ablelinktech.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S080007

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 08 $75,000

Abstract: The project addresses the needs of students and adults with intellectual disabilities for

written self-expression by designing, developing, and testing a universally designed, multimedia

compositioning software application. This application creates a specific format for independent expression of thoughts, ideas, experiences, knowledge, personal history, and other typical literary output. The

system provides an automated interface to a simplified process for recording, saving, organizing,

retrieving, and distributing user-authored multimedia documents. The resulting new technology provides the benefits of independent self-expression and preservation of compositions in multimedia

documents for peer and future consumption.
3-60 NIDRR Program Directory FY 2008 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Colorado

Evaluation of a Universally Designed Multimedia Approach to Promote

Independent Access to Instant Messaging Technology for Individuals

with Intellectual Disabilities

AbleLink Technologies, Inc.

618 North Nevada Avenue

Colorado Springs, CO 80903

steve@ablelinktech.com

www.ablelinktech.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S080008

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 08 $75,000

Abstract: This project develops and evaluates a multimedia instant messaging (IM) system, Visual

Messenger, that is designed to be usable independently by individuals with intellectual and other

cognitive disabilities. The prototype software system developed in this project is used in a betweensubjects pilot study comparing it with mainstream IM applications to measure its effectiveness in terms

of independent usability, efficacy, and potential for impacting social isolation. The resulting new

technology tool provides benefits in the areas of social connectedness, recreation, self esteem, and

computer skills. It also serves as a reasonable accommodation in situations where IM is a requirement

of a job. The primary benefit is providing an independently usable platform for individuals with

intellectual disabilities to communicate with friends and family, be they across town or across the

country, in real time.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-61

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Colorado

Money Coach: A Money Management System to Facilitate Independent

Living for Individuals with Intellectual Disabilities

AbleLink Technologies, Inc.

618 North Nevada Avenue

Colorado Springs, CO 80903

dan@ablelinktech.com

www.ablelinktech.com

Principal Investigator: Daniel K. Davies

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S080042

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 08 $75,000

Abstract: This project addresses the critical need for money management skills training necessary for

independent community living through the development of a software system (Money Coach). Money

Coach utilizes both hand-held technology and desktop software to assist individuals with intellectual

disabilities with money management and related skills. Project goals include: (1) developing project

requirements for the Money Coach system; (2) designing and building a fully functioning software

prototype; and (3) conducting field assessments to evaluate its utility for improving independence and

self-determination in personal money management for individuals with intellectual disabilities.
3-62 NIDRR Program Directory FY 2008 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Colorado

Pocket Email: Development and Evaluation of an Accessible PDABased Email Program to Facilitate Remote Communication for

Individuals with Intellectual Disabilities

AbleLink Technologies, Inc.

618 North Nevada Avenue

Colorado Springs, CO 80903

dan@ablelinktech.com

www.ablelinktech.com

Principal Investigator: Daniel K. Davies

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S080014

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 08 $75,000

Abstract: This project evaluates the technical merit and feasibility of Pocket Email, a PDA-based

accessible email program which is universally designed to meet the unique needs of individuals with

intellectual disabilities for communicating via email with family members and other caregivers while in

community settings. Recent PDA and wireless technology developments, such as Blackberry or

Pocket Outlook, have potential to empower individuals with intellectual disabilities with new remote

communication supports. PDA-based wireless email technology provides access to the benefits of

remote communication for individuals with intellectual disabilities who do not have literacy skills or

cognitive/physical capacities to use similar mainstream communication. Project objectives include: (1)

developing preliminary requirements for the system; (2) designing and building a software prototype;

and (3) evaluating the independent usability for individuals with intellectual disabilities to send and

receive email messages using this technology through a pilot study. The increased ability to communicate provides an important level of assurance to caregivers and assists in alleviating some concerns that

increased independence can raise.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-63

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Florida

Signing Science Pictionary for Young Learners who are Deaf or Hard of

Hearing

Vcom3D, Inc.

3452 Lake Lynda Drive, Suite 260

Orlando, FL 32817

jasonh@vcom3d.com

www.vcom3d.com

Principal Investigator: Jason Hurdich

Public Contact: 407/737-7310; Fax: 407/737-6821

Project Number: H133S080039

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 08 $74,973

Abstract: This project develops and evaluates a prototype signing Science Pictionary (SSP) for both

personal computer and handheld applications. The mobile version of the dictionary provides mobility

and independence that leads to opportunity-based learning in classrooms, on field trips, or while

reading a book anytime, anywhere. Project goals are to: (1) develop proof-of concept software for a

100-term illustrated sign language dictionary of scientific terms for students in grades K-3; (2) implement and test different user interfaces on the PC (both Windows and Macintosh) and handheld devices;

and (3) modify and develop a fully functional prototype of the software to include American Sign

Language and Signed English definitions for at least 700 science terms covering the major standardsbased topics in life, physical, and earth and space science. Terms are drawn from textbooks and quality

electronic and print resources.
3-64 NIDRR Program Directory FY 2008 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Indiana

SoundCompass - A Wearable Sound Direction and Motion Detector for

People who are Deaf or Hard of Hearing

CreateAbility Concepts, Inc.

5610 Crawfordsville Road, Suite 2401

Indianapolis, IN 46224

steve@createabilityinc.com

www.createabilityinc.com

Principal Investigator: Stephen M. Sutter

Public Contact: 317/484-8400; Fax: 317/484-8401

Project Number: H133S080054

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 08 $75,000

Abstract: This project researches, develops, and demonstrates the technical merit and feasibility of a

wearable device which (1) detects the direction of a sound source or motion, and (2) alerts the user via

vibration, images, and captions to the direction of this sound source or movement relative to the current

position of the individual. This provides the user with a sense of independence and personal safety by

alleviating concerns as to whether recreational, educational, vocational, or independent living settings

may be adequately equipped to protect them. SoundCompass functions indoors or outdoors in environments involving potential interaction with equipment, vehicles, animals, or other people. The device is

designed to work as a standalone or in conjunction with other sensing systems and multipurpose

mobile technology. Specific objectives include: (1) determination of end user requirements, (2) development a prototype of the SoundCompass device, and (3) performing a usability analysis with actual

users.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-65

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Minnesota

Connectivity to Modern Electronics for the Hearing Disabled

Advanced Medical Electronics Corporation

6901 East Fish Lake Road, Suite 190

Maple Grove, MN 55369

ghavey@ame-corp.com

Principal Investigator: Gary Havey

Public Contact: 763/463-4814, x104; Fax: 763/467-4817

Project Number: H133S080032

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 08 $75,000

Abstract: This project creates a wireless solution for interconnecting hearing aids with consumer

electronic devices based on a new, ultra-low-power radio specifically developed by project partner

IntriCon Corporation (St. Paul, MN), for use in micro-behind-the-ear (Micro-BTE) hearing aids. The

small consumer electronics add-on module, with greater than 100-hour battery life from a standard

zinc-air hearing aid battery, can directly communicate with micro-BTE hearing aids. It allows for the

use of wireless technology and provides a connectivity solution that has many advantages over other

current solutions. The result is a module (audio digitizer and transmitter module) compatible with

nearly all future wireless hearing aids. This new module allows hearing aid users to receive highquality sound data directly from such items as cell phones, televisions, computers, digital audio players,

and classroom public announcement systems.
3-66 NIDRR Program Directory FY 2008 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

New York

Knowledge Athletes Platform: Capitalizing on Online Communication

to Increase Participation and Learning for All Students

Knowledge Athletes, Inc.

13 Countryside Road

Fairport, NY 14450

www.knowledgeathletes.com

Principal Investigator: Dave Miller

Public Contact: 585/330-3051

Project Number: H133S080027

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 08 $74,681

Abstract: This project develops web-based educational software (Knowledge Athletes ® Platform - or

KAP) for use in inclusive education settings. The software supports the participation of students who

are deaf, hard of hearing, or have disabilities affecting auditory processing and experience difficulty in

oral communication. KAP provides teachers with new opportunities to engage their classes online in

intellectual endeavors and educationally relevant dialogues without having to rely on verbal communication. It capitalizes on a number of promising new technologies and an application previously developed by Knowledge Athletes ®. Project objectives include: (1) developing a preliminary prototype; (2)

conducting focus groups and surveys with the targeted student population and their teachers; and (3)

carrying out an initial pilot testing of the prototype to inform critical decisions about the specific features included in the final product. The development of web-based education software increases the

participation of students who have traditionally been left out of classroom discussions and interactions;

thus providing new opportunities for learning and academic success for students and reducing the

learning achievement gap between students with disabilities and their mainstream peers.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-67

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

New York

Creating Audio-Tactile Illustrated Digital Talking Books Using a

Digital Pen-Based Computing Platform

Touch Graphics, Inc.

330 West 38th Street, Suite 1204

New York, NY 10018

sl@touchgraphics.com

www.touchgraphics.com

Principal Investigator: Steven Landau 800/884-2440

Public Contact: 800/884-2440; Fax: 646/452-4211

Project Number: H133S080030

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 08 $75,000

Abstract: This project expands upon current digital talking book technology and creates and delivers

an Illustrated Digital Talking Book (IDTB), which improves upon current technology by providing

accessible graphs, maps, diagrams, or other images. These books give readers control of audio-based

content playback and permit examination of raised-line and textured imagines in a traditional book

format. Readers touch the tip of a special electronic “pen” to parts of illustrations when looking at

items such as diagrams, maps, tables, and graphs and then listen to an audio description of those items.

No computer or other hardware devices are needed, making the system portable and inexpensive.
3-68 NIDRR Program Directory FY 2008 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

New York

Diabetes Monitoring for Cognitively Impaired Adults

Medgraph, Inc.

53 Glenside Way

Rochester, NY 14612

eds@med-graph.com

Principal Investigator: Edward Schluter 585/453-9437

Public Contact: Fax: 585/453-9437

Project Number: H133S080013

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 08 $74,980

Abstract: This project helps adults with cognitive impairments (CI), family members, other caregivers,

and medical personnel in monitoring and controlling diabetes in a home setting. The project has four

objectives: (1) to study how CI affects the over-all self-care, family care, and professional care of

persons with diabetes; (2) to identify unique needs of adults ages 21-65 with diabetes who have mild to

moderate CI; (3) understand how specific deficits related to CI affect self-monitoring of blood glucose;

and (4) to apply these findings to new hardware, software, and educational materials that will enable

this target population to function more independently. Medgraph’s Glucose Monitoring System provides a simple and intuitive monitoring and education system available to individuals with disabilities

and diabetes who are otherwise not served. By improving the collection, transmission, and visual

display of variables such as glucose, blood pressure, pulse, cholesterol, and spirometer information,

overall health care costs can be lowered, quality of life enhanced, and mortality for diabetics decreased.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-69

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

North Carolina

A Social Networking System for Parents and Professionals Working

with Children with Autism Spectrum Disorders

The Sandbox Learning Company

18801 Nautical Drive, Suite 206

Cornelius, NC 28031

amy.maguire@sandbox-learning.com

Principal Investigator: Amy Maguire

Public Contact: 800/704-7815; Fax: 877/562-2923

Project Number: H133S080021

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 08 $74,960

Abstract: This project develops a social networking system that: (1) brings real world skills and

settings into the home and school using video modeling, (2) is safe and cost effective, and (3) creates a

trusted network for parent and professional resource sharing. This social networking system prototype

allows participants to learn essential social skills and be able to generalize them to other settings,

people, and materials; and allows parents and professionals to use the system to upload videos, scripts,

and data collection sheets.
3-70 NIDRR Program Directory FY 2008 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Utah

Utility Arm and Upper Limb Prosthesis

Motion Control, Inc.

115 North Wright Brothers Drive

Salt Lake City, UT 84116

harold@utaharm.com

www.utaharm.com

Principal Investigator: Harold Sears

Public Contact: 801/326-3434; Fax: 801/978-0848

Project Number: H133S080017

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $75,000

Abstract: This project develops an innovative upper extremity (UE) prosthetic system which offers

substantial improvement in functionality, ruggedness, and comfort for persons with limb deficiencies at

transradial, elbow, and transhumeral levels. Called “Utility Arm,” the system of improved components

is designed to increase independence and work capabilities for users of arm prostheses. The hybrid UE

prosthetic system allows the prosthesis wearer to transition easily from electric terminal device to bodypowered terminal device, i.e., transition from work to recreation, even dry-to-wet environments. Key

design elements include: (1) Finite Element Analysis; (2) high-strength molded exoskeleton shells for

the utility arm; and (3) body-powered elbow lock design.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-71

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Wisconsin

Conversational Computer Interface for Managing Personal

Information: JotChat

Custom Technology Ltd.

867 Waban Hill

Madison, WI 53711

karen@customtechnologyltd.com

www.tridbit.com

Principal Investigator: Karen Blaedow

Public Contact: 608/276-5516

Project Number: H133S080023

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 08 $74,960

Abstract: The project develops a conversational personal information manager named JotChat which

allows users to communicate with computers using ordinary language, leveraging a natural language

technology called Tridbit technology. Tridbit technology simplifies aspects of the natural language

understanding problem through its unique knowledge representation model. JotChat users enter and

retrieve information in English, for example: “Art’s phone number is 775-555-1295,” “I meet with Jim

tomorrow” or “What groceries do I need?” JotChat improves the lives of individuals with visual and

print disabilities who cannot easily use conventional user interfaces. Project objectives include: (1) the

addition of “untrained input” from users regarding personal information such as calendars, lists, contacts, and notes; (2) improvement of voice recognition accuracy through the incorporation of Tridbit

technology with enhanced Nuance speech recognition system to assess viability of voice input option

for JotChat; and (3) testing of level of coverage achieved and modification as necessary for accuracy

and improvements in voice recognition and overall user experience.
3-72 NIDRR Program Directory FY 2008 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Colorado

ATLAS: An Accessible Testing, Learning, and Assessment System for

Individuals with Intellectual Disabilities to Facilitate Inclusion and

Access to the General Curriculum

AbleLink Technologies, Inc.

618 North Nevada Avenue

Colorado Springs, CO 80903

dan@ablelinktech.com

Principal Investigator: Daniel K. Davies 719/592-0347

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S080066

Start Date: October 01, 2008

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 08 $250,000

Abstract: This project builds upon previous research to fully develop and field test the ATLAS

system, an innovative system that facilitates access to tests and surveys for individuals with intellectual

and other cognitive disabilities. ATLAS is a portable testing and assessment system that can be used by

teachers and evaluators to create accessible, self-paced tests and evaluations for students and adults

with intellectual disabilities which can then be completed by the individual in a self-directed manner

using a portable computer device. The ATLAS system promotes the access of students with intellectual

and other cognitive disabilities to the general education curriculum by facilitating their participation in

testing activities in the regular classroom. The ATLAS System addresses the important educational

needs of individuals with intellectual and other cognitive disabilities by facilitating independent access

to tests and surveys for a significant population of American citizens using portable technology.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-73

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Florida

Mobile Language Reference for Deaf and Hard-of-Hearing K-12

Students

Vcom3D, Inc.

3452 Lake Lynda Drive, Suite 260

Orlando, FL 32817

jasonh@vcom3d.com

www.vcom3d.com

Principal Investigator: Jason Hurdich

Public Contact: 407/737-7310

Project Number: H133S070088

Start Date: October 01, 2007

Length: 24 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 07 $249,998; FY 08 $249,724

Abstract: This project develops software for hand held devices for use in elementary and secondary

grades. During Phase I of this project, Vcom3D developed and tested a prototype Mobile Language

Reference for students in the middle grades that included American Sign Language and Signed English definitions selected from the Signing Science Dictionary, developed by TERC and Vcom3D, as

well as explanations of multi-sense words and English idioms. Initial testing of the Mobile Language

Reference indicated a high level of user acceptance and provided evidence that the system can improve

learning outcomes. For Phase II, Vcom3D creates and evaluates a mobile version of the Signing

Science Dictionary with at least 1,300 scientific terms. Like the original dictionary, this mobile version

targets students in the middle grades. Versions are created for hand held media and multi-function

devices, such as the iPod, iPhone, Blackberry, and Sidekick; and tools and a starter kit developed for

teachers to create “personalized dictionaries” that could include additional scientific terms, idioms,

multi-sense words, and unfamiliar words that would benefit the students within their own curriculum,

and could also be used in informal settings. The feasibility and efficacy of these personalized dictionaries and the tools used create them is evaluated independently of the Signing Science Dictionary.
3-74 NIDRR Program Directory FY 2008 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Illinois

A Low-Cost Portable/Wearable Device for Intelligent Stretching and

Movement Training of Hypertonic Forearm in Stroke with Outcome

Evaluation

RehabTek, LLC

2510 Wilmette Avenue

Wilmette, IL 60091

rehabtek_bo@yahoo.com

Principal Investigator: Yupeng Ren 847/024-1659

Public Contact: 847/024-1659; Fax: 847/853-8380

Project Number: H133S080076

Start Date: October 01, 2008

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 08 $239,013

Abstract: This project develops a wearable/portable robotic device, IntelliStretch, to perform therapeutic rehabilitation of the arm with the following three integrated steps: (1) stretching a spastic/stiff joint

to its extreme position under intelligent control to loosen the stiff joint, (2) voluntary movement training

using virtual reality games interfaced with assistance/resistance control when needed, and (3) quantitative outcome evaluation. The device is low cost and portable so that patients can use the device conveniently and frequently in a local clinic under monitoring of a clinician or at home with initial instruction/training from a clinician. IntelliStretch is first modified for wearable design to improve portability

and functionality. Second, in order to motivate/facilitate patients in motor-function recovery, voluntary

movement training by playing virtual reality games is added. Finally, the outcome of the robotic

treatment is evaluated quantitatively in terms of the biomechanical and neuromuscular properties of the

joint. The IntelliStretch device facilitates the delivery of healthcare services to remote locations, such as

patients’ homes and local clinics, and, thus enables an increased number of patients to receive effective

treatment and outcome evaluation conveniently while enjoying the games.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-75

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Indiana

Hearing Companion: Handheld Portable Sound Identification and

Critical Alerting Functionality for People Who Are Deaf or Have

Hearing Loss

CreateAbility Concepts, Inc.

5610 Crawfordsville Road, Suite 2401

Indianapolis, IN 46224

steve@createabilityinc.com

www.createabilityinc.com

Principal Investigator: Stephen M. Sutter 317/484-8400

Public Contact: 317/484-8400; Fax: 317/484-8401

Project Number: H133S080075

Start Date: October 01, 2008

Length: 24 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 08 $250,000

Abstract: Based on previous research, this project develops and demonstrates the HearingCompanion

which: (1) automatically recognizes specific sounds in the environment on a pocket-sized device; and

(2) alerts the user on their mobile device via vibration, images, and captions that identify these recognized sounds. This efficient, wearable system utilizes existing and developing technology, improving

the ability of a person who is deaf to function more naturally in a work or school environment. Phase II

project goals include: (1) enhance the Hearing Companion device and application; (2) expand the

number of mobile communication devices supported; (3) perform an extended usability evaluation of

the device in a range of activities in vocational, public, and daily living scenarios; and (4) prepare for

transition into commercialization. The portable handheld system significantly enhances the user’s sense

of safety, security, and independence by providing a means of sound recognition heretofore unavailable to these individuals. Moreover, the personal devices provide a convenient and powerful tool for

mobile information and communication.
3-76 NIDRR Program Directory FY 2008 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Minnesota

Wireless Wrist Device to Alert the Deaf of Sounds and Events in Their

Environment

Advanced Medical Electronics Corporation

Engineering AME

6901 East Fish Lake Road Suite #190

Maple GroveMaple Grove, MN 55369

gseifert@ame-corp.com

www.ame-corp.com

Principal Investigator: Greg Seifert 763/463-4814

Public Contact: 763/463-4814, ext. 101; Fax: 763/463-4817

Project Number: H133S080068

Start Date: October 01, 2008

Length: 24 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 08 $250,000

Abstract: This project develops a wireless system to alert individuals who are deaf to critical sounds

and events in their environment. This efficient, wearable system utilizes existing and developing

technology, improving the ability of a person who is deaf to function more naturally in a work or

school environment. The system uses a consumer product called a Bluetooth wristwatch, which is

essentially a wireless wrist-worn computer interface and display. The Bluetooth watch serves as a

hands-free universal interface to a network of sensors providing data about the surrounding environment and as a convenient interface for text messaging. The text messaging feature is significant since

text messaging is common among individuals who are deaf and has also increased communication

between individuals who are deaf and individuals who are hearing.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-77

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Minnesota

Powered Mounting and Positioning System

Blue Sky Designs, Inc.

2637 27th Avenue South, Suite 209

Minneapolis, MN 55406

dianne@blueskydesigns.us

www.blueskydesigns.us

Principal Investigator: Dianne Goodwin

Public Contact: 888/724-7002; 612/724-7002; Fax: 612/724-7004

Project Number: H133S060096

Start Date: October 01, 2006

Length: 24 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 06 $237,212; FY 07 $262,786; FY 08 (No-cost extension through 9/30/2009)

Abstract: In this Phase II project, a powered mounting and positioning system is developed and

provides independent access to communication devices, work surfaces, books, cell phones, PDAs,

food, drinks, and more for individuals with significant limitations. Device positioning is controlled

through switches, voice, or joystick control. Programming is accomplished with a single switch. A

person may move the mount to one of four custom set positions and make independent adjustments to

each joint, the tilt, and the height. For example: tilting or rotating a communication device display to

avoid glare. With a powered positioning system and the ability to rotate whatever object is mounted

360 degrees, different devices (a book, cell phone, and AAC device) mounted on a single tray can be

rotated into position, allowing a person to change activities or access other items. This technology can

be applied outside the rehabilitation field. The commercial potential extends to other areas, such as

manufacturing and assembly settings, doctors, dentists, surgeons, hospital beds, photography and

lighting applications, ergonomic workstations, nursing homes, schools, laboratories, and home entertainment systems. The increased independence gained has a substantially positive impact on a person’s

self-reliance, their work and school performance, and their sense of control.
3-78 NIDRR Program Directory FY 2008 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Oregon

My ScrivenerTM Innovative Technology to Enhance Fine Motor

Function

Obslap, Inc.

3130 Summit Sky Boulevard

Eugene, OR 97405

obslap.research@comcast.net

Principal Investigator: Susan Palsbo

Public Contact: 541/505-7591; Fax: 541/505-759,*51

Project Number: H133S070082

Start Date: October 01, 2007

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 07 $262,565; FY 08 $233,594

Abstract: This project builds upon current research, development, and evaluation work for a prototype

special education intervention called My ScrivenerTM. My ScrivenerTM is based on emerging research

demonstrating that computer-assisted motion training can stimulate the growth of neural connections.

The system uses a force-feedback peripheral haptic unit attached to a personal computer for “sense of

touch” instruction in printing, through repetitive-motion, for children with fine-motor skill deficits.

During Phase II, a prototype is being developed and clinical trials conducted to demonstrate the feasibility of visible improvement in the child’s fine motor and handwriting skills. My ScrivenerTM is

anticipated to significantly improve proprioceptive awareness and hence, writing, as measured by

accuracy and speed for children with development coordination disorders arising from attention deficits, autism, mild cerebral palsy, intellectual disabilities, or unspecified learning disabilities.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-79

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Oregon

Why Go It Alone? The Use of Public Resources to Enhance Computer

Accessibility for Individuals with Intellectual Disabilities

Life Technologies, LLC

P.O. Box 11306

Eugene, OR 97440

foxl@ohsu.edu

Principal Investigator: Lynn Fox 503/725-3188

Public Contact: 503/725-3188

Project Number: H133S070096

Start Date: October 01, 2007

Length: 24 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 07 $244,206; FY 08 $253,510

Abstract: The Personal Access Computer Key (PACK) is a modified Universal Serial Bus (USB)

designed to accommodate adaptive software and can be launched on publicly accessible, updated

computers. Phase II of this project focuses on research and design in addressing security concerns

which make PACK unusable on public computers (e.g. public library computers). Two additional

applications, a desktop game and a rehabilitation homework program, are evaluated across a range of

settings and participants with cognitive impairments.
3-80 NIDRR Program Directory FY 2008 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Oregon

Television Assisted Promotion (TAP): Enhancing Rehabilitation

Outcomes with Familiar Technology

Life Technologies, LLC

P.O. Box 11306

Eugene, OR 97440

rik@coglink.com

Principal Investigator: Richard Lemoncello 541/915-8472

Public Contact: 541/915-8472; Fax: 541/346-5373

Project Number: H133S080077

Start Date: October 01, 2008

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 08 $251,000

Abstract: Based on previous research, this project (1) refines the TV Assisted Prompting (TAP)

system hardware and software while expanding its utility to new rehabilitation domains; and (2)

continues to employ an incremental design process, partnering with patients, care providers, and

therapists to design and evaluate a user-friendly system. The TV Assisted Prompting (TAP) system

offers a simple alternative for delivering home program content through a patient’s own TV, prompting

and motivating them to initiate and complete home therapy programs. In this second phase, the TAP

system is refined into a flexible, less expensive system for commercialization. Technical and rehabilitation development expands upon the current system features to develop user-friendly interfaces for

clinicians and patients which facilitate the use of the TAP system in a variety of rehabilitation programs. The TAP system benefits the rapidly growing population of individuals with cognitive disabilities in need of on-going rehabilitation to maximize their progress post-injury.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-81

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Pennsylvania

Universal Access to Passenger Rail

Marshall Elevator Company

2015 Mary Street

Pittsburgh, PA 15203

Lvanroosmalen@marshallelevator.com

www.marshallelevator.com

Principal Investigator: Linda van Roosmalen, PhD

Public Contact: Rob Jamison 412/431-1340

Project Number: H133S050136

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $249,825; FY 06 $249,925; FY 07 (No-cost extension through 9/30/2008);

FY 08 (No-cost extension through 9/30/2009)

Abstract: Freight rail shares train tracks with passenger rail cars. The differences in car width result in

horizontal gaps between passenger rail cars and boarding platforms. This gap creates safety hazards

not only for wheelchair users but also for the elderly, for individuals with visual impairment, and even

for other passengers boarding rail cars. This project continues the research on the Phase I prototype

QuickRampTM. Phase II activities optimize QuickRamp’sTM strength, durability, and drive mechanisms; and evaluate the system for safety and usability. This technology provides a universal solution

to the rail access problem and solves platform-to-rail car access for all potential rail passengers including individuals using wheeled mobility, children, individuals with visual impairment, and the elderly.

Additionally, it eliminates rail personnel assistance for individuals with disabilities boarding or exiting

trains, ensuring passenger independence for all train riders.
3-82 NIDRR Program Directory FY 2008 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Pennsylvania

Low Vision Lime: Solution for Low Vision Musicians to Read, Perform,

Write, and Print Music Notation

Dancing Dots Braille Music Technology, L.P.

1754 Quarry Lane, P.O. Box 927

Valley Forge, PA 19482

info@dancingdots.com

www.dancingdots.com

Principal Investigator: William McCann

Public Contact: 610/783-6692

Project Number: H133S070089

Start Date: October 01, 2007

Length: 24 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 07 $250,150; FY 08 $249,865

Abstract: This project evaluates and defines the Lime notation software, a self-contained, music

reading and writing system that allows low vision musicians to independently accomplish typical tasks

important to performers and composers with normal vision. It enables performers and composers with

low vision to read/perform and write/revise notation, including accessible editing and printing. Specifically, the system allows for magnification that is up to 10 times the original image; displays magnified

notation on a flat-panel monitor mounted on a music stand using a combination of automatic and usercontrolled scrolling; adds specialized magnification of music notation, a custom scrolling mode, user

control of colors and contrast; integrates a touch tablet and stylus of manual markup; and expands the

implementation of MusicXML import/export to facilitate exchange with commercial notation software.

Project goals include: (1) refining and completing continuous scrolling display options; (2) completing

Lime’s integrated score enlargement and low vision feature set; (3) finalizing configuration and scripting of third-party magnification utilities; (4) measuring effectiveness of new features with a select

cross-section of musicians with low vision; (5) developing markup option for handwriting annotations

on scores; (6) expanding MusicXML import/export capability; and (7) measuring effectiveness with a

select cross-section of musicians with low vision.
NIDRR Program Directory FY 2008 - Technology for Access and Function 3-83

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Utah

Wireless EMG Preamp and Improved Mounting System

Motion Control, Inc.

115 North Wright Brothers Drive

Salt Lake City, UT 84116

harold@utaharm.com

www.utaharm.com

Principal Investigator: Harold Sears

Public Contact: 801/326-3434; Fax: 801/978-0848

Project Number: H133S070084

Start Date: October 01, 2007

Length: 24 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 07 $257,065; FY 08 $242,935

Abstract: This project develops a small, waterproof, Wireless EMG Preamp sensor for myoelectric

arm prostheses. The waterproof sensor transmits a digital signal via a wireless link, eliminating many

of the wires and connectors associated with arm prostheses, and allowing connection to modern roll-on

gel type liners (which maintain consistent and intimate contact with the wearer’s skin). The Wireless

EMG Preamp sensor is designed for use with popular mounting techniques, and improves the contact

of electrodes with the skin, reduces the wires that the prosthetist must install inside the socket, and

through digital signal processing, reduces the interference from rapidly-growing causes of EMG signal

problems, thus creating a benefit for both the wearers and prosthetists. The Wireless EMG Preamp

system enhances the practicality of myoelectric arm fittings by reducing breakdowns, and thereby

increasing the reliability of the day-to-day wearer’s control of the arm prosthesis.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Disability and Rehabilitation Research Projects .................................................................................. 15

Field Initiated Projects (FIPs) .............................................................................................................. 20

Small Business Innovation Research (SBIR), Phase I ......................................................................... 37

Participation and Community Living

NIDRR's focus on participation follows the stated purpose of independent living

programs to promote a philosophy of independent living, including a philosophy of

consumer control, peer support, self-help, self-determination, equal access, and

individual and system advocacy, in order to maximize the leadership, empowerment,

independence, and productivity of individuals with disabilities, and the integration

and full inclusion of individuals with disabilities into the mainstream of American

society. NIDRR sponsors research to improve knowledge of individual- and

societal-level factors that may serve as barriers to, or facilitators of, participation

among all people with disabilities.

NIDRR Program Directory FY 2008 - Participation and Community Living 4-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center on Personal Assistance

Services

University of California, San Francisco

Department of Social and Behavioral Sciences

3333 California Street, Suite 455

San Francisco, CA 94118-0612

pas@ucsf.edu

www.pascenter.org

Principal Investigator: Charlene Harrington, PhD, RN 415/476-4030

Public Contact: 866/727-9577; 415/502-7190 (V); 415/502-5216 (TTY); Fax: 415/476-6552

Project Number: H133B031102

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $900,000; FY 04 $900,000; FY 05 $900,000; FY 06 $900,000; FY 07

$900,000; FY 08 (No-cost extension through 6/30/2009)

Abstract: This project provides research, training, dissemination, and technical assistance on issues of

personal assistance services (PAS) in the United States. Center projects focus on: (1) the relationship

between formal and informal PAS and caregiving support, and the role of AT in complementing PAS;

(2) policies and programs, barriers, and new models for PAS in the home and community; (3)

workforce development, recruitment, retention, and benefits; and (4) workplace PAS models that

eliminate barriers to formal and informal PAS and AT at work. The Center is based at the University of

California, San Francisco, and includes the Topeka Independent Living Resource Center, InfoUse, the

Paraprofessional Healthcare Institute, the Institute for the Future of Aging Services, as well as faculty

members at the University of Maryland, Baltimore County Policy Sciences Graduate Program, the

West Virginia University Job Accommodation Network, and the University of Michigan’s Institute of

Gerontology and the Department Health Management and Policy. A Blue Ribbon Advisory Committee of PAS users, disability advocates, business leaders, independent living center leaders, and academics provides guidance to the project.
4-4 NIDRR Program Directory FY 2008 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Personal Assistance Services (PAS) in the 21st Century

University of California, San Francisco

3333 California Street, Suite 455

San Francisco, CA 94118-0612

pas@ucsf.edu

www.pascenter.org

Principal Investigator: Charlene Harrington, PhD, RN 415/476-4030

Public Contact: 866/727-9577; 415/502-7190 (V); 415/502-5216 (TTY); Fax: 415/476-6552

Project Number: H133B080002

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 08 $850,000

Abstract: This rehabilitation research and training center focuses on: (1) improving access to Personal

Assistance Services (PAS) by individuals with disabilities; (2) improving the workforce to support

individuals with disabilities; and (3) understanding the complexities of the economics of PAS. This

project: (1) analyzes trends in the met and unmet needs for PAS in the United States, and the changing

demographics of the PAS population, and makes national and state projects of need; (2) investigates

the relationship between need and economic status for working age and older groups; (3) tracks and

analyzes trends in PAS participants, services, and expenditures and federal and state Olmstead-related

initiatives to expand PAS; (4) identifies state PAS policies and barriers to meeting the need for PAS;

and (5) analyzes state PAS intervention strategies and factors which impact the success of expanding

PAS services. Additionally, this project develops health promotion and educational tools, supports, and

interventions to improve the health of caregivers and PAS users; addresses the needs of children and

their family caregivers through focused research on the impact of family caregiving on employment;

and examines the needs and supports for aging minority caregivers and the amount and type of

caregiving provided by family or friends. Moreover, this project gathers and makes available existing

strategies, and develops a model approach for emergency PAS. While monitoring and analyzing trends

and demographics of paid PAS workforce, this project identifies and tracks state strategies to improve

PAS worker wages and benefits; monitors state trends in the number and diversity of PAS workers,

their compensation, turnover, and vacancies; and evaluates the effectiveness of state efforts. This

project also identifies and makes available comprehensive information about developments in state

training requirements for PAS workers and evaluation of these programs; collects and analyzes primary

data on workplace PAS, AT, and employment supports; and analyzes barriers to employment among

Medicaid PAS beneficiaries and whether AT lessens the need for PAS. Finally, the RRTC analyzes the

role of tax laws that affect reimbursement for PAS.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Florida

Rehabilitation Research and Training Center for Children’s Mental

Health

University of South Florida

Florida Mental Health Institute

13301 Bruce B. Downs Boulevard MHC2335

Tampa, FL 33612-3807

kutash@fmhi.usf.edu

rtckids.fmhi.usf.edu

Principal Investigator: Robert Friedman, PhD 813/974-4640

Public Contact: Krista Kutash, PhD 813/974-4661 (V); Fax: 813/974-6257

Project Number: H133B040024

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $835,000; FY 05 $835,000; FY 06 $801,190; FY 07 $785,400; FY 08

$750,400

Abstract: The Research and Training Center Children’s Mental Health conducts an integrated set of

research projects designed, in the short run, to enhance knowledge about effective implementation of

systems of care, and, in the long run, to make it possible for children with serious emotional disturbances to live, learn, work, and thrive in their own communities. The Center has developed a theory of

factors that contribute to effective implementation; within that theory is a strong emphasis on the

importance of understanding from a systemic perspective the interrelationship between the different

factors, and their relationship to the community culture and context in which a service delivery system

exists. The Center has a set of six interconnected research projects that use both quantitative and

qualitative methods, and are holistic in their focus, to further test and develop its theory. The Center

translates new knowledge from research into change in policy and practice through a targeted program

of training, consultation, technical assistance, publication, and dissemination. To support these efforts,

the Center maintains dissemination partnerships with a range of organizations committed to help

present research findings in formats well-suited for key audiences of state and local policy makers,

family organizations, researchers, and representatives of related service sectors.
4-6 NIDRR Program Directory FY 2008 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center for Health and Function

Across the Lifespan of Individuals with Intellectual and Developmental

Disabilities

University of Illinois at Chicago

Department of Disability and Human Development MC 626

College of Applied Health Sciences

1640 Roosevelt Road

Chicago, IL 60608-6904

rrtcamr@uic.edu

www.rrtcadd.org

Principal Investigator: Tamar Heller, PhD 312/413-1647

Public Contact: Alan Factor, Associate Director 800/996-8845 (V); 312/413-1520 (V); 312/413-0453

(TTY); Fax: 312/413-1630

Project Number: H133B080009

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 08 $849,996

Abstract: This project provides a beneficial impact on the health and function of adults with intellectual and developmental disabilities (I/DD) and their families over their lifespan through a coordinated

set of research, training, technical assistance, and dissemination activities. Project goals include: (1)

improving health and function of adults with I/DD; (2) enhancing consumer-directed home and community-based long-term care; (3) reducing environmental barriers to health and community participation; and (4) developing an improved instrument to measure health and function in persons with I/DD

to facilitate assessment of outcomes in health promotion interventions. Projects relating to the promotion of health and function include: (1) examination of risk factors and age-related changes in health

status for adults with varying neuro-developmental conditions; (2) cohort study of health behaviors on

health and function, and interventions to improve balance and prevent falls for people with I/DD; and

(3) innovative approaches to community-based health promotion for people with I/DD. This RRTC

enhances caregiving supports and consumer direction through research on hiring practices in consumer

direction, interventions to improve consumer directed services, and family support interventions to

improve the health of minority families. Additionally, this project develops and tests tools used in

measuring the effectiveness and efficiency of home-based supports and in measuring the cognitive,

social, and physical accessibility of environments for people with I/DD.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Policies Affecting

Families of Children with Disabilities

University of Kansas

Center for Research, Inc.

Beach Center on Disability

Haworth Hall, Room 3136

1200 Sunnyside Avenue

Lawrence, KS 66045-7534

turnbull@ku.edu

www.beachcenter.org

Principal Investigator: H.R. Turnbull, LLM; Ann Turnbull, EdD

Public Contact: H. R. Turnbull, LLM 785/864-7600; Fax: 785/864-7605

Project Number: H133B031133

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $749,951; FY 04 $749,960; FY 05 $749,997; FY 06 $749,899; FY 07

$749,930; FY 08 (No-cost extension through 1/31/2009)

Abstract: This center conducts eight research projects on the effects of the policies of governments,

systems, networks, and agencies on the family quality of life and community integration (FQOL/FCI)

of families who have children with developmental disabilities and emotional-behavioral disabilities or

both. Researchers identify four target populations: families, providers, policy-leaders, and networks (all

at the federal, state, and local levels). Early intervention and consumer control of funding are two

policy challenges through which the effects of policies on families can be understood. For each policy

challenge, researchers inquire into whether the applicable federal and state policies and practices, and

the applicable network policies, advance FQOL/FCI; whether the policies across education, social

services, and health care are mutually consistent with each other and advance FQOL/FCI; and whether

the practices of agencies in those systems advance FQOL/FCI. The center’s analytical framework

holds that the core concepts shape policies, policies shape services, policies and services should be

coordinated and delivered through partnerships. Enhanced FQOL/FCI occurs when there is coherence

among core concepts, coordinated policies delivered through partnerships, and coordinated services

delivered through partnerships; and influencing factors must invariably be taken into account.
4-8 NIDRR Program Directory FY 2008 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Measurement and

Interdependence in Community Living (RRTC/MICL)

The University of Kansas

Research and Training Center on Independent Living

1000 Sunnyside Avenue

Room 4089 Dole Center

Lawrence, KS 66045-7555

rtcil@ku.edu

www.rtcil.org

Principal Investigator: Glen W. White, PhD 785/864-4095

Public Contact: Pam Wilits 785/864-4095 (V); 785/864-0706 (TTY); Fax: 785/864-5063

Project Number: H133B060018

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 06 $649,839; FY 07 $649,908; FY 08 $649,686

Abstract: The goal of this project is to increase the independence and participation of people with

disabilities in their communities through the development and implementation of scientifically sound,

theoretically driven, and evidence-based interventions. Researchers accomplish this through six core

projects. Two research projects, one on community participation and a second on economic utility,

involve development of theory-driven measurement tools. The remaining four projects include the

application of these measurement tools as part of their methods and procedures. Two of these projects

are interventions and two develop model assessments. The first assessment project uses secondary

analysis to develop and implement a model for assessing the economic utility and health-related outcomes of participants enrolled in Home and Community-Based Service (HCBS) waivers. The second

assessment project evaluates the effects of different independent living advocacy-service models to

determine the comparative effectiveness of different models in increasing community participation. The

first intervention project examines the effectiveness of personal assistance services and enhanced

training to increase consumer participation in the community. The second intervention project is a

multisite study that examines the effects of a consumer-led grassroots approach in identifying and

removing barriers to increase community participation. Together, these projects represent a comprehensive, integrated, and robust set of activities that recognize that “disability” is an interaction between the

characteristics of an individual and his or her environment.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-9

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center for Recovery and

Recovery Oriented Psychiatric Rehabilitation for Persons with LongTerm Mental Illness

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

mfarkas@bu.edu; erogers@bu.edu

www.bu.edu/cpr/research/ongoing/rtc2009/index.html

Principal Investigator: Marianne Farkas, ScD; E. Sally Rogers, ScD 617/353-3549

Public Contact: E. Sally Rogers, ScD 617/353-3549; Fax: 617/353-7700

Project Number: H133B040026

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $750,000; FY 05 $750,000; FY 06 $750,000; FY 07 $750,000; FY 08

$750,000

Abstract: This project focuses on the concepts and dimensions of recovery and the various factors that

inhibit and facilitate recovery from long-term mental illness by a comprehensive and meritorious set of

research projects and training, technical assistance, and dissemination activities. The research and the

training, dissemination, and technical assistance programs are organized into the following three

programmatic areas of investigation and development: concepts and dimensions of recovery, factors

enhancing recovery, and factors inhibiting recovery. The research projects are designed to have an

impact on the field at multiple levels, including the personnel level as well as the program and system

levels. Research projects use a participatory research process with significant input from consumers

and other stakeholders, and culminate in dissemination, training, or technical assistance activities to

maximize the input of the research program. The Training, Dissemination, and Technical Assistance

(TDTA) projects are designed to provide exposure, experience, and expertise levels of knowledge

transfer. The TDTA program produces new technologies in recovery and psychiatric rehabilitation, and

increases the likelihood that researchers, service providers, and others use the cumulative knowledge

developed by the RRTC. The RRTC is tied together by its programmatic focus on the three specific

core areas, strengthened by the use of appropriate research strategies, and assisted by a vigorous

program of training, technical assistance, and dissemination activities designed to maximize the impact

of the RRTC at all levels in the field of psychiatric rehabilitation.
4-10 NIDRR Program Directory FY 2008 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Opening Doors for Children with Disabilities and Special Health Care

Needs

Children’s Hospital

Institute for Community Inclusion

300 Longwood Avenue

Boston, MA 02115-5737

www.communityinclusion.org

Principal Investigator: Judith S. Palfrey, MD

Public Contact: 617/355-4661; Fax: 617/730-0633

Project Number: H133B060012

Start Date: October 01, 2005

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $800,000; FY 07 $800,000; FY 08 $800,000

Abstract: This rehabilitation research and training center on children with disabilities who have

special health care needs (CYDS) tests the effectiveness of two intensive interventions, integrated

transition planning and community participation in recreation and fitness, and demonstrates the viability of a screening tool to promote access to services and supports for traditionally underserved communities. Research activities include two intervention projects that use randomized controlled designs to

improve the educational and recreational activities of CYDS and a demonstration project to improve

the early identification of CYDS from traditionally underserved communities. Research Study 1

investigates the use of a regional interagency team that integrates innovative practices in education,

social services, and medical support for transition aged students. Research Study 2 builds off of innovative practices in recreation and volunteer training to examine a model that integrates CYDS into

community recreation activities. Research Study 3 models the integration of a reliable screening

mechanism into the flow of activity at a busy, urban neighborhood health center. The RRTC is a

collaboration of the Massachusetts Consortium for Children with Special Health Care Needs, the

Parent Advocacy Coalition for Educational Rights (PACER), and six multicultural community-based

organizations that serve traditionally underrepresented communities. RRTC staff and collaborators

include nationally and internationally known experts in pediatrics, nursing, public policy, education,

family advocacy, rehabilitation, and community organizing.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-11

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Minnesota

Rehabilitation Research and Training Center for Community Living

and Employment for Individuals with Intellectual and Developmental

Disabilities

University of Minnesota

The Institute on Community Integration

204 Pattee Hall, 150 Pillsbury Drive, SE

Minneapolis, MN 55455

lakin001@umn.edu

rtc.umn.edu

Principal Investigator: Charlie Lakin, PhD 612/624-5005

Public Contact: Sheryl Larson, PhD 612/625-6024; Fax: 612/625-6619

Project Number: H133B080005

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 08 $850,000

Abstract: The Rehabilitation Research Training Center for Community Living (RRTC/CL) conducts

intervention and outcome research to generate and share knowledge about community living, employment, and self-determination. Through compressive study of individual outcomes of a random sample

of 10,300 adults with intellectual and developmental disabilities (I/DD) from 15 geographically representative states, this project studies intervention programs in self-determination, relationship building,

employment, and direct support professional training, and the first US and largest ever trial of the

active support model of organizational and staff support of persons with I/DD. Additionally, this study

identifies and evaluates existing instrumentation in community living outcome studies. The RRTC/CL

conducts quantitative intervention, outcome studies, and research synthesis on the state of knowledge

and practice and case studies of organizations exemplifying transformations and practice needs in order

to achieve full inclusion. Through training, conferences, and technical assistance this project provides

an integrated “intramural” training program that develops a “next generation” of skilled disability

researchers and professionals. This includes the RRTC/CL College of Direct Support, a national,

multimedia, interactive, Internet-based training program.
4-12 NIDRR Program Directory FY 2008 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center for Community

Integration for Individuals with Disabilities, Strengthening Family and

Youth Participation in Child and Adolescent Mental Health Services

Portland State University

Regional Research Institute

School of Social Work

P.O. Box 751

Portland, OR 97207-0751

janetw@pdx.edu

www.rtc.pdx.edu

Principal Investigator: Barbara Friesen, PhD 503/725-4166

Public Contact: Donna Fleming, Center Manager 503/725-8313; Fax: 503/725-4180

Project Number: H133B040038

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $835,000; FY 05 $835,000; FY 06 $801,190; FY 07 $785,400; FY 08

$750,400

Abstract: This project conducts research, training, and technical assistance activities to study and

promote effective, community-based, culturally competent, family-centered, individualized, and

strength-based services for children and youth with emotional or behavioral disorders and their families. Projects include: (1) “Community Integration (CI) of Transition-Age Youth,” designed to gain

understanding of CI and related concepts from the perspectives of transition-age youth, young adults,

and caregivers; (2) “Transition to Independence: Outcomes of School-Based Support for Youth with

Mental Health and Developmental Disabilities” is evaluating a pilot school-based program that assists

participants age 18-21 with mental health and developmental disabilities to successfully transition to

employment and appropriate levels of independent living and use of adult social services; (3) “Achieve

My Plan (AMP)” [previously Partnerships in Individualized Planning] develops an intervention to

increase youth and family member participation in the individualized service planning process, a

conceptual framework for understanding recovery in children’s mental health, and ways to reduce

stigma; (4) “Work-Life Integration” addresses CI for adult caregivers of children and youth with

emotional disorders, specifically around maintaining employment. It is designed to influence human

resource professionals’ practice, and aims to reduce stigma and increase organizations’ family friendliness; (5) “Transforming Transitions to Kindergarten” focuses on the preschool-kindergarten transition

for young children with challenging behaviors. It develops and tests an intervention promoting

children’s successful school entry while empowering caregivers; (6) “Practice-Based Evidence: Building Effectiveness from the Ground Up,” conducts a case study in partnership with a Native American

youth organization and the National Indian Child Welfare Association, and addresses the need to study

practices that are believed to be helpful, but for which little evidence exists.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-13

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Pennsylvania

Rehabilitation Research and Training Center on Participation and

Community Living of Individuals with Psychiatric Disabilities

University of Pennsylvania

Collaborative on Community Integration

3535 Market Street, 3rd Floor - CMHPSR

Philadelphia, PA 19104

pennrrtc@mail.med.upenn.edu

www.upennrrtc.org

Principal Investigator: Mark Salzer, PhD 215/349-8483

Public Contact: Katy Kaplan 215/746-6713; Fax: 215/349-8715

Project Number: H133B080029

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 08 $850,000

Abstract: The research of this center focuses on two core areas: (1) Enhancing the capacity of individuals and systems to maximize participation and community living through the advancement of

theory, measures, methods, and intervention knowledge, with a focus on Centers for Independent

Living, specific (education, parenting, mental health care) and broad participation domains, and efforts

to address disparities in understudied areas; and (2) increased incorporation of mental health research

findings into practice and policy through systematic reviews, partnering with multiple stakeholders to

advance the use of knowledge, and providing training, dissemination, and technical assistance to

change behaviors and practices of key stakeholders. The goal of this Center is to ensure, in the wake of

the Olmstead decision, that individuals with psychiatric disabilities not only move from institutional

care to more integrated settings but also are free to choose to participate in a wide range of roles in their

communities. This Center capitalizes upon longstanding collaborations among three Philadelphiabased central partners, experience derived from previous research, and trusting and mutual partnerships

with multiple stakeholders. These guarantee the project’s ability to conduct research that advances

knowledge that meets the needs of end-users and effectively translate this knowledge into innovative,

next generation policies and practices.
4-14 NIDRR Program Directory FY 2008 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Texas

Rehabilitation and Training Center on Community Integration of

Persons with TBI

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

2455 South Braeswood

Houston, TX 77030

asander@bcm.tmc.edu; struchen@bcm.tmc.edu

www.tbicommunity.org

Principal Investigator: Angelle M. Sander, PhD; Margaret Struchen, PhD;

Public Contact: 713/383-5644 (Sander); 713/383-5645 (Struchen)

Project Number: H133B031117

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 03 $799,960; FY 04 $799,968; FY 05 $799,936; FY 06 $799,450; FY 07

$799,259; FY 08 (No-cost extension through 10/31/2009)

Abstract: The research program of this project includes: development and evaluation of a social

network mentoring program; an investigation of racial/ethnic differences in acceptance of disability,

community integration needs, barriers, and supports; a distance learning program to train family members in rural areas as paraprofessionals; a randomized clinical trial to assess the effectiveness of a brief

substance abuse intervention; a qualitative exploration of intimacy following TBI; and a study investigating the role of social communication abilities and environmental factors on social integration.

Training projects include: a National Information, Educational Resources, Dissemination, and Technical Assistance Center for the Community Integration of Individuals with TBI; development of educational materials for increasing community awareness of TBI and reducing attitudinal barriers; adoption

of a social action network program from disability studies for improving positive identity; partnering

with artists in the community to implement a Center for Creative Expressions for Persons with TBI;

training of community healthcare professionals in the community integration needs of persons with

TBI; a rehabilitation fellowship in community integration of persons with TBI; development of educational materials to train state vocational counselors in the needs of persons with TBI; and a state-of-thescience conference and book on community integration.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-15

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

National Center for Parents with Disabilities and Their Families

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

tlg@lookingglass.org

www.lookingglass.org

Principal Investigator: Megan Kirshbaum, PhD; Paul Preston, PhD;

Public Contact: 510/848-1112 (V); Fax: 510/848-4445

Project Number: H133A080034

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 08 $500,000

Abstract: The National Center for Parents with Disabilities and Their Families targets three national

populations: parents with diverse disabilities, family members, and service providers and trainees who

have a particularly critical impact on parents. The Center’s activities target the most critical issues

facing parents with disabilities and their families: custody and parental evaluations; family roles and

personal assistance; paratransit; and intervention with parents with cognitive and intellectual disabilities. The overall goal of this project is to improve the quality of life among parents with disabilities and

their families. The overall goal is met by incorporating the project’s research, development, training,

and technical assistance and dissemination activities into four project objectives. The four project

objectives are: (1) increase the national availability of accessible and disability appropriate resources

for parents with diverse disabilities and their families; (2) increase knowledge of parenting with a

disability among diverse parents, family members, and providers; (3) increase informed practice and

informed decisions regarding parenting with a disability among providers; and (4) increase state and

local legislative and policy changes to decrease discrimination against parents with disabilities and their

children. The Center conducts eight separate research and eight new development projects; provides

technical assistance to at least 8,000 parents and providers; conducts focused trainings to 12,000

diverse parents and providers; and nationally disseminates at least 200,000 project materials and

products consolidated from Center activities as well as from other NIDRR-funded projects. Center

activities are guided by the following basic principles: (1) utility to parents, family members, and

service providers; (2) social change to improve the lives of parents with disabilities and their families;

(3) consumer involvement as integral to all activities; (4) value of consumer-based knowledge; (5)

value of diverse perspectives; (6) use of multiple and accessible formats; and (7) dissemination and

utilization as interactive and ongoing processes.
4-16 NIDRR Program Directory FY 2008 - Participation and Community Living

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Louisiana

Evacuation Methodology and Understanding Behavior of Persons with

Disabilities in Disasters: A Blueprint for Emergency Planning Solutions

Louisiana State University

Stephenson Disaster Management Institute

1103 Patrick F. Taylor Hall

Baton Rouge, LA 70803

bgerber@lsu.edu

www.bus.lsu.edu/students/news/stories/2008.08.25_evac_method.asp? dept=69

Principal Investigator: Brian J. Gerber, PhD 225/578-0238

Public Contact: 225/578-0238; Fax: 225/578-8741

Project Number: H133A080069

Start Date: October 01, 2008

Length: 24 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 08 $449,963

Abstract: This project quantifies and interprets the unique challenges of persons with disabilities and

other special needs during emergency/disaster evacuations in order to improve the management of such

events. Participating research institutions gathers data on persons with disabilities/special needs who

have either recently personally evacuated from an emergency/disaster situation, have been in or proximate to a recent disaster evacuation, or who reside in an area that has not experienced a recent evacuation, but might face a type of hazard that could prompt an evacuation some time in the future. The

project gathers data in order to evaluate the current state of evacuation preparedness in the area of

special/functional needs by local government and key non-governmental service providers across the

United States. The investigators integrate these two data sources to create guidelines that key decisionmakers, both governmental and nongovernmental, can use to improve existing evacuation plans to

account for the disabilities/special needs public based upon urban, suburban, and rural models. Likewise, the project also produces guidelines for incorporating a disability/special needs element in emergency evacuation training and exercises along with delineating future emergency preparedness educational needs within the individuals with disabilities community. Results and products of the study are

disseminated to service providers, emergency managers, first responders, other planners, and policy

makers across the United States.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-17

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

A Center on Postsecondary Education for Students with Intellectual

Disabilities

University of Massachusetts Boston

Institute on Community Inclusion

100 Morrissey Boulevard

Boston, MA 02125

www.thinkcollege.net

Principal Investigator: Debra Hart, PhD; Meg Grigal, PhD 617/590-8082

Public Contact: Debra Hart, PhD 617/590-8082

Project Number: H133A080042

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 08 $500,000

Abstract: This center conducts research and disseminates information on promising practices that

support individuals with intellectual disabilities (ID) to access inclusive postsecondary education

resulting in improved long-term independent living and employment outcomes. Additionally, the

Center addresses the gaps in knowledge about the participation of individuals age 13-26 with intellectual disabilities in postsecondary education programs by: (1) conducting a national survey to collect

new national data from postsecondary programs that serve students with ID to identify key characteristics (e.g., recruitment, retention, college course access, use of accommodations) and promising practices of postsecondary education programs at community colleges, vocational-technical schools, and

four-year colleges that currently serve students with ID, including dual enrollment programs; (2)

conducting a secondary analysis using three existing national longitudinal datasets to determine

whether variations in educational, vocational, employment, and independent living outcomes for

students with ID are associated with participation in different types of postsecondary education programs; (3) compiling existing and developing new technical assistance materials, including replicable

promising practices for postsecondary education institutions that are developing new or expanding

existing services and programs for students with ID; and (4) disseminating both new and existing

technical assistance and informational materials in partnership with existing training and technical

assistance providers, including the NIDRR Research and Dissemination Centers, to all key stakeholders including students with ID and their families. The Institute for Community Inclusion works in

collaboration with TransCen, Inc.
4-18 NIDRR Program Directory FY 2008 - Participation and Community Living

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Asset Accumulation and Economic Self-Sufficiency (AAESS)

Syracuse University

Office of Sponsored Programs

113 Browne Hall

Syracuse, NY 13244

Principal Investigator: Michael Morris

Public Contact: 202/296-2046; Address: 1667 K St., NW, Suite 640,; Washington, DC 20006; Fax:

202/296-2046

Project Number: H133A080014

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 08 $300,000

Abstract: Building upon research conducted by the Asset Accumulation and Tax Policy Project

(AATPP), the current) project provides understanding of economic status of working age adults with

disabilities, and policy and system barriers to asset accumulation and community participation. Two

intervention studies contribute individual and system level knowledge impacting asset accumulation,

economic self-sufficiency, and community participation of persons with disabilities. Intervention One:

Resource, Employment, Assets, and Learning (REAL) opportunity study, is an experimental design

building on research in the IRS Benchmark Study of Taxpayers with Disabilities (2006) and longitudinal outcome research findings in AATPP. REAL evaluates the impact of asset building strategies on

economic status and community participation of 360 individuals with disabilities during the project in 2

pilot sites. Intervention Two: Building Economic Success Together (BEST) Accounts study, offers a

comprehensive menu of accessible, user-friendly, affordable products and services in response to

evidence from AATPP. BEST is offered by credit unions in 6 culturally and geographically diverse

locations to 1,800 individuals with diverse disabilities and demographics such as age, gender, family,

minority status, and recent service disability. Data analysis is used to identify increased use of asset

building strategies, reduced dependence on payday and predatory lenders, reduction of debt, changes

in economic status, and savings. Thematic analysis of focus groups and interviews produce knowledge

on individual and system factors that diminish or facilitate opportunities to advance asset accumulation,

self-sufficiency, and community participation measures of social, civic, and economic activities.

AAESS continues collaboration with the IRS to design and conduct an updated and extended benchmark study in 2009 to further research on economic status of taxpayers differentiated by disability and

demographics to help design future research. The project includes creation and dissemination of asset

development and financial literacy curricula to complement other poverty-alleviation strategies.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-19

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Oregon

School Transition & re-Entry Program (STEP): Systematic Hospital-toSchool Transition for Students with Traumatic Brain Injury

Western Oregon University

The Teaching Research Institute

99 West 10th Avenue, Suite 370

Eugene, OR 97401

glanga@wou.edu

www.tr.wou.edu/STEP/

Principal Investigator: Ann E. Glang, PhD

Public Contact: 541/346-0594; Fax: 541/346-0599

Project Number: H133A060075

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 06 $300,000; FY 07 $300,000; FY 08 $300,000

Abstract: Due to the absence of effective procedures for transitioning students from hospital to school,

many students with traumatic brain injury (TBI) who need specialized services are not identified for

special education. This lack of identification can lead to inappropriate services, and perpetuates the

lack of awareness of TBI among school professionals. This project utilizes a systematic approach to

developing, testing, and disseminating a comprehensive hospital-school transition intervention, called

the School Transition & re-Entry Program (STEP). Researchers evaluate the effectiveness of the STEP

intervention, which includes referral to a school-based transition specialist, long-term tracking of

student performance, and parent advocacy training, in a three-phase research plan. Following the

Phase I development period involving focus groups and interviews with parents, hospital staff, and

school personnel, and a year-long pilot test (Phase II), the project evaluates the effectiveness of the

transition intervention in a multi-site randomized control trial (Phase III).
4-20 NIDRR Program Directory FY 2008 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

Assessing Safety Risk after Traumatic Brain Injury

Shepherd Center

2020 Peachtree Road, NW

Atlanta, GA 30309

ron_seel@shepherd.org

Principal Investigator: Ronald T. Seel, PhD

Public Contact: 404/387-5625; Fax: 404/350-7596

Project Number: H133G080153

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $199,896

Abstract: This project develops a standardized, ecologically valid measure of safety risk in persons

aged 16 and older who have sustained mild complicated, moderate, or severe traumatic brain injury

(TBI). An ecologically sensitive item bank is developed to assess the wide range of potential safety

issues that persons with TBI face in everyday living situations. Focus groups are conducted with

primary stakeholders including persons with TBI, family caregivers, and service providers to establish

content validity. Item Response Theory (IRT) methodologies, specifically Rasch analysis, are used to

calibrate items along a hierarchy matching item difficulty to the safety abilities of persons with TBI.

Based on Rasch analyses, the safety measure for persons with TBI generates safety risk probability

scores on four scales theorized to be causative factors: physical capacity, cognitive capacity, perceived

susceptibility to harm (judgment), and self-regulation (impulsivity). Ecological and prognostic validity

is established using family journals in which unsafe behavior of persons with TBI is recorded and

rated.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-21

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Promoting Health, Empowerment, and Community Integration Among

People with HIV/AIDS: The Medication Adherence Program Study-II

(MAPS-2)

University of Illinois at Chicago

104 South Michigan Avenue, Suite 900

Chicago, IL 60603-5902

razzano@psych.uic.edu

www.psych.uic.edu/mhsrp

Principal Investigator: Lisa A. Razzano, PhD

Public Contact: 312/422-8180, ext. 20; Fax: 312/422-0740

Project Number: H133G060224

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 06 $147,341; FY 07 $145,861; FY 08 $146,908

Abstract: The Center on Mental Health Services Research and Policy at the University of Illinois at

Chicago (UIC) is collaborating with the Chicago Department of Public Health (CDPH) to assist

people with HIV/AIDS live healthier, more productive lives. Clients at CDPH clinics are offered the

opportunity to participate in an innovative program designed to improve adherence to medication and

treatment regimens, promote physical health and wellness, cultivate consumer empowerment, and

foster community integration. This program examines the effects of peer-delivered medication support

services compared to services delivered by traditional medication specialists among people living with

HIV/AIDS. The addition of the peer component builds upon the success of the UIC Medication

Adherence Program Study-I (MAPS-1), a three-year, NIDRR-funded investigation of the impact of

specialized medication adherence services provided to people living with HIV/AIDS.
4-22 NIDRR Program Directory FY 2008 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Kansas

Combining Technologies to Maximize Outcomes: Telemedicine and

Online Training Program for Parents of Children with Autism

University of Kansas

Schiefelbusch Institute for Life Span Studies

Juniper Gardens Children’s Project

650 Minnesota Avenue, 2nd Floor

Kansas City, KS 66101

lhpowell@ku.edu

www.jgcp.ku.edu

Principal Investigator: Linda S. Heitzman-Powell, PhD

Public Contact: 913/321-3143; Fax: 913/371-8522

Project Number: H133G060238

Start Date: October 01, 2006

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 06 $149,824; FY 07 $149,965; FY 08 $149,923

Abstract: This project seeks to address challenges faced by geographically remote families in accessing effective intervention services for their young children diagnosed with an autism spectrum disorder

(ASD). In order to address this challenge, the project is developing a program that uses a research-topractice outreach training model to teach parents of children with an ASD how to implement empirically-based interventions with their children. The development of this program is proceeding across

four phases: (1) initial content and system development and informational focus groups; (2) formative

evaluation; (3) quasi-experimental assessment and system refinement; and (4) final analysis and preparation for dissemination. In Phase 3, parents of children with autism are using online tutorials to learn

general information and concepts related to an intervention or treatment protocol, followed by a

telemedicine clinic intervention session. During the intervention session parents practice the techniques

discussed in that week’s online tutorials with their child while receiving guidance and immediate

feedback from trained intervention coaches. Program effectiveness is being evaluated based on level of

parental knowledge and skill fluency, child level of disability (e.g. the ICF) and behavior, and reported

family quality of life. In addition, participants complete exit surveys and interviews to elicit feedback

regarding how the program could be improved and any problems they experienced. Intervention

components are introduced to study families in a multiple baseline design. In order to assess the

sustainability of the project, following Phase 3, six additional families are recruited to participate in the

outreach telemedicine clinic from a community-based telemedicine site (Phase 4).
NIDRR Program Directory FY 2008 - Participation and Community Living 4-23

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Instrument to Measure Recovery-Promoting Competence Among

Providers Serving Spanish Speaking Mental Health Consumers

Boston University

Sargent College of Health and Rehabilitation Sciences

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue, West

Boston, MA 02215-1203

erogers@bu.edu

Principal Investigator: E. Sally Rogers, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133G060071

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 06 $149,735; FY 07 $149,908; FY 08 $149,953

Abstract: The purpose of this project is to culturally adapt the Recovery Promoting Relationships

Scale (RPRS) for use in four Spanish-speaking cultures (that is, individuals of Mexican, Puerto Rican,

Cuban, and Central and Latin American descent). The resulting scale is an intervention blueprint

designed to cut across specific disciplines and services, to specify the skills and strategies needed to

promote recovery, and to improve the expertise of providers serving Spanish-speaking consumers. This

process helps address the critical need for recovery-oriented mental health services that are research

based, culturally informed, and grounded in the perspectives of Latinos with psychiatric disabilities.

Thus, the goals of this project are: (1) to identify and refine the recovery-oriented competencies required of providers serving mental health consumers of four Spanish speaking cultures; (2) to adapt the

RPRS to be culturally relevant to mental health consumers of four Spanish-speaking cultures; (3) to

pilot test the psychometric properties of the RPRS; (4) to test the clinical utility of the RPRS; and (5) to

systematically develop implications for practice, training of practitioners, and policy, and broadly

disseminate the results.
4-24 NIDRR Program Directory FY 2008 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Development of Measures of Participation and Environment for

Children with Disabilities

Boston University

Sargent College of Health and Rehabilitation Sciences

635 Commonwealth Avenue

Boston, MA 02215

wjcoster@bu.edu

www.bu.edu/kidsworld

Principal Investigator: Wendy J. Coster, PhD 617/353-7518

Public Contact: 617/353-7518; Fax: 617/353-2926

Project Number: H133G070140

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 07 $195,233; FY 08 $195,360

Abstract: This project develops new measures of participation and environment for children and

youth with disabilities using input from families and their children with disabilities. The new measures

are developed using Item Response Theory (IRT) to ensure that the measures developed are interpretable, provide interval level data for analyses, and are valid for the specified purposes. The project has

three major phases. The first phase is a development phase that synthesizes results from prior research

on participation and environment and analysis of the ICF with information derived from focus groups

of caregivers and children and youth with a variety of disabilities to identify meaningful domains and

item content areas for the new measures. Initial item pools are developed, subjected to expert review

and cognitive testing, and then field-tested with both caregiver and child respondents to identify any

significant problems with scaling or content coverage using IRT methods. After revisions based on

these results, a larger field study is conducted using both paper and web-based survey formats to

examine the properties of the revised item pools. The ultimate aim is to develop large pools of participation and environment items that can support survey and computer-adaptive testing measures that are

linked on a common scale. This approach allows flexible development of alternative forms whose

derived scores can be compared directly with one another, e.g. so that results from different studies are

more easily compared. The present project develops and tests (using simulation studies) short survey

forms from the initial pools for immediate use. The research is a collaborative effort between experienced investigators in the United States and Canada. This collaboration facilitates development of

broadly applicable measures by taking into account potential differences in environment and participation across very different health care delivery systems.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-25

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Work Environment and Quality of Life Outcomes: A Comparison of the

Experiences of Formal and Informal Caregivers of Persons with Spinal

Cord Injuries

Wayne State University

Rehabilitation Institute of Michigan

Research Department

261 Mack Boulevard, Room 520

Detroit, MI 48201

cduggan@dmc.org

Principal Investigator: Colette Duggan, PhD; Daniela Ristova-Trendov, MD; 313/745-1070

Public Contact: 313/745-9735; Fax: 313/745-1197

Project Number: H133G060267

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $149,989; FY 07 $149,950; FY 08 $149,994

Abstract: For many persons with a spinal cord injury (SCI), assistance with activities of daily living

and instrumental activities of daily living is crucial to their long-term survival, independence, and

productivity. The goal of this qualitative investigation is to gain a better understanding of the work

environments of SCI caregivers and the micro-processes at work that produce impacts on caregivers’

appraisals of burden, stress, physical health, and psychosocial well-being. The objective of the study is

to document from a contextual life perspective, the linkages between the specific demands of

caregiving and its health consequences. The study targets three groups of SCI caregivers: unpaid

(family) caregivers, paid caregivers hired directly by the consumer, and paid employees of home health

care agencies. The specific aims of the study are to: (1) conduct a comparative study of these three

caregiver groups; (2) analyze this information with specific attention to the connections between

aspects of the work environment, stress, physical health, and psychosocial well-being, and (3) disseminate this information to SCI consumers and their families, rehabilitation researchers, and clinicians, and

to agencies charged with the responsibility of establishing health care policies.
4-26 NIDRR Program Directory FY 2008 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Montana

CIL-Based Abuse Education and Safety Planning Program for Women

with Disabilities

University of Montana

The University of Montana Rural Institute:

A Center for Excellence in Disability Research, Education and Services

52 Corbin Hall

Missoula, MT 59812-7056

rhughes@ruralinstitute.umt.edu

Principal Investigator: Rosemary Hughes, PhD

Public Contact: 406/243-2898; Fax: 406/243-4730

Project Number: H133G070196

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 07 $199,996; FY 08 $199,985

Abstract: The purpose of this project is to develop and evaluate an accessible, consumer-driven abuse

education and safety planning program for women with disabilities. The conceptual model for the

program identifies knowledge about safety planning, self-efficacy, and social connectedness as three

protective factors that influence safety behaviors and safety itself. Drawing on both the strengths of

traditional, community-based domestic violence and sexual assault programs and the cumulative

research findings on the dynamics and prevalence of violence against women with disabilities, this

program offers an integrated approach for meeting the gender-specific and disability-sensitive prevention needs of women with disabilities. The intervention is implemented with women with disabilities

recruited from the ten centers of independent living (CILs) and randomly assigned to a group that will

participate in either the on-going CIL services plus the abuse education and safety planning program,

or to a group receiving the on-going CIL services only. The program consists of six 2.5-hour weekly

sessions using a curriculum that includes topics such as self-advocacy, nature of abuse and violence,

safety planning strategies, and healthy relationships. All sessions include self-efficacy training, goalsetting, problem-solving, and interactive activities to encourage mutual support. A CIL staff member

from each site participates in a comprehensive leader training program conducted by the project personnel. This is the first randomized, controlled evaluation of a violence prevention group program

designed to meet the unique needs of women with disabilities.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-27

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Controlled Study of Affect Recognition Training for Individuals with

Traumatic Brain Injury

University at Buffalo

The State University of New York

Department of Psychiatry

G96 Farber Hall

3435 Main Street

Buffalo, NY 14214

Principal Investigator: Barry S. Willer, PhD; Machiko Tomita, PhD;

Public Contact: Barry S. Willer, PhD 716/829-2300; Fax: 716/829-2300

Project Number: H133G080043

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $200,000

Abstract: The goal of this project is to compare the effects of two innovative training programs on

improving various aspects of emotion recognition in persons with traumatic brain injury (TBI), through

a randomized controlled trial. It has been demonstrated that individuals with TBI often have difficulty

using facial expressions and social contexts to determine how someone is feeling. It is apparent that an

impairment of this nature could considerably influence the behavioral and social outcomes for individuals with TBI. In this study, participants are randomly assigned to one of three groups: Facial Affect

Recognition training, Stories of Emotional Inference training, or (no treatment) Computer Training

Group. Training occurs three times a week for three weeks. Specific outcome measures include: (1)

facial affect recognition (static photos); (2) affect recognition and social inference from video vignettes;

(3) emotional inference for hypothetical situations; (4) level of empathy; and (5) social behavior.

Cognitive performance and level of depression are covariates. In addition, vocal affect recognition

(audiotape) and community integration are also explored.
4-28 NIDRR Program Directory FY 2008 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

North Carolina

Daily Living and Community Skills Video Game for Children with

Developmental Disabilities

The Sandbox Learning Company

18801 Nautical Drive, Suite 206

Cornelius, NC 28031

Principal Investigator: Amy Maguire

Public Contact: 800/704-7815; Fax: 877/562-2923

Project Number: H133G080151

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 08 $199,175

Abstract: This project develops and evaluates a simulation video game to teach children with developmental disabilities, including autism and intellectual disabilities, skills for independence. The project

teaches chained tasks in an engaging and effective game format. This system provides an innovative

and inexpensive way to increase opportunities for instruction while providing correction procedures,

giving multiple exemplars, monitoring progress, and including clips from each student’s community.

This project expands on the preliminary findings in a Phase I study to develop an easy to use, economical, daily living skills game which brings real world experiences and treatment into the classroom

and home. Project goals include: (1) to expand on the successful techniques demonstrated in preliminary studies to create a fully-functional game with 24 skills, (2) to verify through a single subject

design, specifically multiple probes across behaviors, that the simulation video game alone teaches the

skills to 24 children in elementary and middle school with developmental disabilities. A team of educational experts, technology experts, and parents of children with disabilities collaborate on the project to

ensure the skills presented in the game are truly beneficial to individuals with developmental disabilities and the technology used will have the greatest reach.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-29

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

North Carolina

Improving Representative Payeeship for People with Psychiatric

Disabilities and their Families

Duke University

School of Medicine

Psychiatry and Behavioral Sciences

DUMC 3071

Durham, NC 27710

eric.elbogen@duke.edu

Principal Investigator: Eric Elbogen, PhD

Public Contact: 919/682-8394

Project Number: H133G070058

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 07 $198,669; FY 08 $199,187

Abstract: This project evaluates a pilot-tested, stakeholder-informed intervention that is grounded in

principles of psychiatric rehabilitation and encourages consumers with psychiatric disabilities and their

family members to collaborate within the representative payee arrangement. Representative payees,

mostly family members, manage Social Security Administration funds for more than one million

people with psychiatric disabilities. Although studies show payeeship can be used coercively, foster

dependency, reduce work incentives, and lead to family conflict and even violence, there has been little

systematic research on how to lower these significant barriers to community integration. This project

tests the Collaborative Representative Payeeship intervention, a brief, four-session intervention that

aims to facilitate a cooperative consumer-payee relationship, increase accurate knowledge about

representative payeeship, promote collaborative money management and effective budgeting, and

prepare mutually developed plans for carrying out the payeeship in the future. The long-term goal is to

promote recovery among adults with psychiatric disabilities who have payees by reducing downsides

associated with what has been called “the nation’s largest guardianship system.”
4-30 NIDRR Program Directory FY 2008 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Ohio

Teen Online Problem Solving for Pediatric Brain Injury

Children’s Hospital Medical Center

Pediatric Rehabilitation

3333 Burnet Avenue; MLC 4009

Cincinnati, OH 45229-3039

shari.wade@cchmc.org

Principal Investigator: Shari L. Wade, PhD 513/636-7480

Public Contact: Fax: 513/636-7360

Project Number: H133G050239

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 05 $149,629; FY 06 $148,735; FY 07 $149,569; FY 08 (No-cost extension

through 9/30/2009)

Abstract: Traumatic brain injury (TBI) in adolescents is a significant stressor for both the teen and his

or her family. Existing interventions are rare and distance and finances can restrict access to treatment.

The current project addresses these needs by developing and piloting an innovative online intervention

for adolescents with TBI: Teen Online Problem Solving (TOPS). The TOPS intervention is adapted,

based on input from teens with TBI, from a recently developed online program for school-aged children with TBI and their families. The project tests the TOPS intervention in a randomized trial comparing the effects of usual care to TOPS on the following outcomes: (1) adolescent problem-solving and

communication skills; (2) adolescent emotional/behavioral adjustment; (3) parent burden and distress;

and (4) parent-teen conflict. TOPS makes use of emerging technology to address the multifaceted

needs of teens following TBI with the goal of improving the teen’s social and emotional functioning,

thereby enabling him or her to better negotiate the complex transition to adulthood and independent

functioning.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-31

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Ohio

Web Therapy to Improve Outcomes After Traumatic Brain Injury in

Young Children

Children’s Hospital Medical Center

Pediatric Rehabilitation

3333 Burnet Avenue; MLC 4009

Cincinnati, OH 45229-3039

shari.wade@cchmc.org

Principal Investigator: Shari L. Wade, PhD

Public Contact: 513/636-7480; Fax: 513/636-7360

Project Number: H133G060167

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 06 $149,379; FY 07 $147,834; FY 08 $146,762

Abstract: This project adapts online family problem solving for families of young children with

traumatic brain injury (TBI) (Positive Parenting Plus or 3P) and compares it to an Internet resource

comparison group (IRC) in a randomized clinical trial. Participants include families of 40 children,

aged 3-8 years, who experienced a moderate to severe TBI 1-12 months prior to study participation. In

3P, a trained counselor guides families through a six-month structured online parenting skills-building

program via a website and one-on-one videoconference sessions. The IRC group receives computers,

high-speed Internet access, and links to brain injury information and resources, but not the 3P website

content or synchronous sessions. Primary outcomes, to be assessed pre- and post-treatment, include

parenting behaviors (e.g., warmth, responsiveness, and criticism) and parent-child communication.

Secondary outcomes include child behavior problems and parent psychological distress. The

overarching goal of this project is to reduce the risk of long-term behavioral problems and disability in

young children following TBI by equipping parents with increased coping and parenting skills in a

cost effective fashion.
4-32 NIDRR Program Directory FY 2008 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Ohio

Developing College Campuses as Transition Settings for Students with

Severe and Multiple Disabilities Aged 18-21

Kent State University

College and Graduate School of Education, Health & Human Services

Educational Foundations and Special Programs

405 White Hall

Kent, OH 44242

Principal Investigator: Robert Flexer, PhD

Public Contact: 330/672-0584; Fax: 330/672-2512

Project Number: H133G080158

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 08 $199,973

Abstract: This project is designed to address need for sustainable, community-based programs for

students with severe and multiple disabilities (SMD) aged 18-21 by using the college campus as a

transition setting. It also addresses the need for SMD transition professionals to obtain skills in the

areas of person-centered planning, community partnering, and interagency collaboration. Students with

SMD are enrolled in a college-level continuing education class on life planning provided by Kent

State’s Career Services Center. A university instructor directs this class, and collaborating SMD professionals and Kent State students receive service learning credits for providing person-centered planning

and individualized campus activities for the participating students with SMD. These planning and

campus activities are coordinated with students’ individual education and employment plans (IEPs and

IPEs, respectively). Students with SMD are also enrolled in at least one college-level class each semester to assure that they have access to all of Kent State’s services including career planning, health and

wellness, student employment, extracurricular activities, and life-long learning opportunities. To

achieve these outcomes, project staff pursue five objectives: (1) develop college classes for 30 students

with SMD that engage practicing and prospective transition professionals in their life and career

planning; (2) develop and implement daily campus activities for 30 students with SMD based on their

life plans; (3) engage students with SMD, their teachers, university faculty, and other transition stakeholders in evaluating, refining, and supporting this model; (4) develop materials for replication of this

model; and (5) disseminate and replicate this project at other universities.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-33

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Development of a Safety-Planning Tool for Men with Disabilities

Portland State University

Regional Research Institute

PO Box 751

Portland, OR 97201

oschwald@pdx.edu

Principal Investigator: Mary Oschwald, PhD

Public Contact: 503/725-9602

Project Number: H133G070190

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 07 $200,000; FY 08 $200,000

Abstract: In order to plan for safety, men with disabilities (MWD) need to be aware of options and

have access to responsive community resources that support healing, support independence, and assist

with the reporting of violence. The purpose of this project is to develop a gender-appropriate Audio

Computer-Assisted Self-Interview (A-CASI) to ensure MWD have the skills necessary for effective

safety planning. The major goals of the project are to: (1) work closely with MWD to identify safetyplanning options for dealing with abuse; and (2) develop and pilot an A-CASI Safety-Planning Tool

that builds upon current research findings on the abuse experiences of men with disabilities and previous development of a similar A-CASI program for women with disabilities. The project is conducted

by the Regional Research Institute at Portland State University in collaboration with The Rural Institute at University of Montana.
4-34 NIDRR Program Directory FY 2008 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Parent-Infant Interaction Project (PIIP)

Portland State University

Graduate School of Education; SPED

P.O. Box 751

Portland, OR 97207

munsonl@pdx.edu

Principal Investigator: Leslie J. Munson, PhD; Ruth Falco, PhD; David Allen, PhD

Public Contact: Leslie J. Munson, PhD 503/725-4687; Fax: 503/725-5599

Project Number: H133G080132

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 08 $199,945

Abstract: The Parent-Infant Interaction Project (PIIP) develops an evidence-based curriculum for

implementation by parents with intellectual disabilities and their professional or paraprofessional coach

within natural environments to enhance parent-infant interaction and child development. Goals of PIIP

include: (1) develop a research-based curriculum, coaching model, and training materials for use by

parents with intellectual disabilities and their coaches in a collaborative process to enhance the parentinfant relationship and nurture child development; (2) conduct single subject studies of the effects of

PIIP coaching model, curriculum, and training materials, including multiple-baseline design studies

across goals and the collection of additional qualitative data; and (3) field-test and evaluate the coaching model, curriculum, and training materials through a multi-method study across three different types

of early childhood/parent support programs. Partners in PIIP include Early Head Start and Early

Intervention/Early Childhood Special Education, as well as a program providing supports for parents

with intellectual disabilities. The PIIP Coaching Model incorporates innovative strategies and applies

technology that is accessible to individuals with intellectual disabilities. Innovative strategies include a

model for coaching that focuses on self-determination and empowerment of parents as advocates and

decision-makers for themselves and their child. The Infant-Caregiver Interaction Scale provides a tool

to guide collaborative observation, goal-setting, and continuous feedback for parents and their coaches.

The project develops accessible technology, including a DVD of examples of interaction activities with

video-modeling, for use in coaching parents as they learn strategies to enhance parent-infant interaction

within daily play activities. Strategies for planning individualized accommodations, such as easyreading/picture activity schedules and menus, audio prompts, social stories, and self-management

systems, to address parent-child needs are included in the curriculum.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-35

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Outpatient Social Skills Training for Distressed Adolescent Burn

Survivors

University of Texas Medical Branch

815 Market Street

Galveston, TX 77550

pblakene@utmb.edu

Principal Investigator: Jennifer L. Perry 409/770-6718

Public Contact: 409/770-6718; Fax: 409/770-6718

Project Number: H133G050079

Start Date: October 01, 2005

Length: 39 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 05 $150,000; FY 06 $150,000; FY 07 $150,000; FY 08 (No-cost extension

through 12/31/2009)

Abstract: Previous studies suggest that a significant number of survivors of pediatric burn injuries

have a diminished quality of life as young adults. Based on social learning theory and supported by

empirical data, social skills deficits have been identified as a major impediment to maximum psychosocial adjustment for many who have survived serious burn injury; this deficit is a particular handicap as

the child progresses through adolescence. A pilot study suggests that a four-day, intensive, residential

social skills training program was of benefit to troubled teen burn survivors even one year after the

training program was completed. The residential format, however, is expensive and impractical. This

project (1) cross-validates previous findings that a social skills training program is beneficial, i.e. results

in improved social competence and/or diminished behavioral problems, at one-year post-intervention;

and (2) tests the hypothesis that beneficial effects can be maintained or amplified by modifying the

format of the training to a schedule that more closely resembles the usual outpatient clinical schedule.

The goal of this project is to develop and validate an efficient and relatively inexpensive intervention

that can be utilized not only by burn-care teams but by health-care professionals in other specialties that

are concerned with assisting adolescents who are stigmatized by marred appearance or functional

impairment related to a medical condition.
4-36 NIDRR Program Directory FY 2008 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Development of an Internet-Based Self-Esteem Intervention for Women

with Disabilities

Baylor College of Medicine

Center for Research on Women with Disabilities

1475 West Gray, Suite 165

Houston, TX 77019

www.bcm.edu/crowd/

Principal Investigator: Margaret A. Nosek, PhD

Public Contact: 713/523-0909; Fax: 713/523-0466

Project Number: H133G080042

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 08 $200,000

Abstract: This project uses an innovative, Internet-based technology called SecondLife, a 3-D, multiuser virtual environment, to deliver self-esteem enhancement interventions to women with disabilities.

Project objectives include: (1) reviewing and refining previous self-esteem curricula; (2) developing

and testing a methodology to teach participants to navigate SecondLife, and interact with other individuals using real-time voice dialogue; and (3) converting the self-esteem enhancement intervention

into a format that uses real-time voice dialogue group interactions in SecondLife, supplemented with

on-screen information and illustrations. This Internet-based intervention allows people with disabilities

to access secure systematic online health promotion programs designed to increase ability to selfmanage chronic conditions and disabilities, achieve improved health and mental health outcomes, and

ultimately achieve full participation in their communities.
NIDRR Program Directory FY 2008 - Participation and Community Living 4-37

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Oregon

Context Aware Self Management Tools for Individuals with Significant

Cognitive Disabilities

Assistech Systems, LLC

99 West 10th Avenue, Suite 397

Eugene, OR 97401

tkeating@eugeneresearch.org

Principal Investigator: Thomas Keating, PhD

Public Contact: 541/342-3763; Fax: 541/342-4310

Project Number: H133S080041

Start Date: October 01, 2008

Length: 6 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 08 $74,956

Abstract: This project has two goals: (1) to develop and evaluate the feasibility of intelligent, computer-based self-management and household management applications that would improve the independent living capacity of persons with cognitive disabilities, and (2) to identify an agenda for full

development of a deployable system in a Phase 2 project. Intelligent multimedia computer agents offer

an untapped resource to augment the functional cognitive ability of individuals with disabilities in

community living settings who lack skills for self-monitoring and decision-making and who cannot use

text-based systems or other commercial personal management systems due to their cognitive complexity. Assistech Systems builds on previous work in the development of cognitively accessible life skills

applications and rule-based expert systems for independent living to develop a limited features, selfmanagement prototype application with activity monitoring and tracking tools with integrated behavioral recognition capability. Consumers will not only be able to track and act on information regarding

personal care and household management activities such as bathing or grocery shopping, but also

interact with intelligent, intuitive, graphic user interfaces. Feasibility testing methods include a multiple

baseline study of three pairs of consumers/caregivers.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Field Initiated Projects (FIPs) ................................................................................................................ 6

Disability Demographics

The ultimate goal of NIDRR’s disability demographics effort is to generate new

information that can be used by individuals with disabilities, service providers,

policymakers, and others working to identify and eliminate disparities in

employment, participation and community living, and health and function. NIDRR

has long funded studies that mine data to address the full range of social, health, and

economic facets of disability and that compare findings across data sources. There

are significant correlates with disability, such as aging; and there are a variety of links

between disability and other factors, including culture, race, and ethnicity. NIDRR

also nurtures methodological work that addresses identified gaps in data, such as the

sparse measurement of the interface between individual and environment.

NIDRR Program Directory FY 2008 - Disability Demographics 5-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Measuring

Rehabilitation Outcomes and Effectiveness

Feinberg School of Medicine

Northwestern University

Center for Rehabilitation Outcomes Research

Rehabilitation Institute of Chicago

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

www.ric.org/research/outcomes/rrtc_projects.php

Principal Investigator: Allen W. Heinemann, PhD 312/238-2802

Public Contact: Trudy Mallinson, PhD 312/238-1623; Fax: 312/238-2383

Project Number: H133B040032

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 04 $700,000; FY 05 $700,000; FY 06 $700,000; FY 07 $700,000; FY 08

$700,000

Abstract: The purpose of this RRTC is to provide national leadership on the functional assessment,

outcomes, and health policy issues facing the medical rehabilitation community and the diverse consumers it seeks to serve. The Center conducts research; hosts forums for discussion; publishes in

rehabilitation, health policy, and consumer literature; trains researchers in rehabilitation-focused health

services research; and disseminates information to diverse consumer, provider, and academic audiences. The RRTC’s research seeks to (1) enable comparison of functional status measures across postacute settings so information can be provided to consumers and other rehabilitation stakeholders about

the outcomes and effectiveness of various post-acute care settings; (2) develop an innovative measure

of community participation in a meaningful, reliable, and valid manner in order to better describe the

long-term outcomes of rehabilitation services; (3) increase the efficiency of outcome data collection so

more resources can be directed to patient care; and (4) examine how format and presentation style

influences patient understanding of rehabilitation quality outcome indicators in order to provide information in ways that are helpful for consumers when selecting rehabilitation services. The project uses

recent developments in item response theory, computer adaptive testing, and stakeholder input in test

development, outcomes reporting, and quality indicator reporting. The expected outcomes are a rational basis for provision of rehabilitation services in post-acute care settings, increased efficiency of data

collection, a better measure of community participation, and outcome reporting that is responsive to

stakeholder needs. Dissemination activities include post-graduate and post-doctoral training opportunities, conferences, and a website that provides information on measurement of rehabilitation outcomes

across the continuum of post-acute settings.
5-4 NIDRR Program Directory FY 2008 - Disability Demographics

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Demographics and

Statistics

Cornell University

Ives Hall, Room 331

Ithaca, NY 14853

smb23@cornell.edu

www.disabilitystatistics.org

Principal Investigator: Harry Katz, PhD; Susanne Bruyère, PhD; Richard Burkhauser, PhD; Melissa

Bjelland, PhD; 607/255-9536

Public Contact: Susanne Bruyère, PhD 607/255-9536 (V); 607/255-2891 (TTY); Fax: 607/255-3274

Project Number: H133B031111

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $750,000; FY 04 $750,000; FY 05 $750,000; FY 06 $750,000; FY 07

$750,000; FY 08 (No-cost extension through 11/30/2009)

Abstract: The RRTC on Demographics and Statistics (Cornell StatsRRTC) bridges the divide between the sources of disability data and the users of disability statistics. The project conducts research

exploring the reliability of existing data sources and collection methods, and studies the potential to

improve current and future data collection efforts. In addition, the project utilizes existing data sources

to provide a comprehensive and reliable set of statistics, and increase access to and understanding of

how statistics can be used effectively to support decision making. Cornell StatsRRTC works with key

organizations to determine their needs and helps them maximize the use of disability statistics in their

ongoing efforts to improve the lives of people with disabilities and their families. As members of the

Cornell StatsRRTC, the American Association of People with Disabilities, the Center for an Accessible Society, and InfoUse provide vital expertise and resources needed to reach the users of disability

data and statistics. The Cornell StatsRRTC includes researchers from Cornell University, Mathematica

Policy Research, the Urban Institute, and the Institute for Matching People and Technology, all of

which bring extensive expertise in working with and creating sources of disability data.
NIDRR Program Directory FY 2008 - Disability Demographics 5-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Disability Statistics

and Demographics

SUNY Research Foundation

695 Park Avenue

New York, NY 10065

joneil@hunter.cuny.edu

Principal Investigator: John O’Neill, PhD

Public Contact: 212/772-5188; Fax: 212/772-5188

Project Number: H133B080012

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 08 $850,000

Abstract: The Rehabilitation Research and Training Center on Disability Statistics and Demographics

(StatsRRTC) facilitates evidence-based decision making in many different service and policy arenas to

benefit persons with disabilities, leading to improved education and employment outcomes.

StatsRRTC is a collaborative effort that brings together the lead investigators from three current

RRTCs: the StatsRRTC, Employment Service System RRTC, and Employment Policy RRTC; and

partners them with leaders in the disability advocacy community from the American Association of

People with Disabilities and leaders in vocational rehabilitation from the Council of State Administrators of Vocational Rehabilitation. Project activities include: (1) producing a set of guides to and metaanalyses of existing survey and administrative data sources, (2) conducting experiments to test alternative survey methods, (3) expanding and distributing the Annual Disability Status Reports, (4)

expanding and revising the Source Guide for Surveying People with Disabilities, (5) providing an

information and referral technical assistance service, (6) providing stylized statistical estimates and

methodological consulting for key stakeholders as a follow-up to outreach and training activities, and

(7) conducting training designed to build capacity among consumers and within the vocational rehabilitation system and other support services systems related to data collection and analysis, secondary

data analysis, and reporting processes. Project goals include: improving the knowledge of and access

to existing data; generating the knowledge needed to improve future disability data collection; and

strengthening connections between the data from and regarding respondents, researchers, and decision

makers.
5-6 NIDRR Program Directory FY 2008 - Disability Demographics

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Colorado

Public Spending for Disability in the United States: A Comparative,

Longitudinal Study

University of Colorado Health Sciences Center

3825 Iris Avenue, Suite 200

Boulder, CO 80303

braddock@cu.edu

Principal Investigator: David L. Braddock, PhD

Public Contact: 303/492-0639

Project Number: H133G070163

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 07 $199,961; FY 08 $199,961

Abstract: This project is a comprehensive longitudinal study of the characteristics, trends, and determinants of public spending for disability programs in the United States at the federal, state, and local

level. Data collection and analysis utilizes 28 disability program subcategories across 4 major activity

domains: income maintenance, general health care, long-term care, and special education. The

project’s comprehensive focus includes intellectual/developmental disabilities, mental illness, and

physical/sensory disability. The envisioned state-by-state and nationwide database on public spending

and program participation will be developed across fiscal years 1997-2008.
NIDRR Program Directory FY 2008 - Disability Demographics 5-7

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Minnesota

Development and Use of a Multi-State Database on Individual

Outcomes and their Predictors for Persons with Intellectual and

Developmental Disabilities in the US

University of Minnesota

The Institute for Community Integration

204 Pattee Hall, 150 Pillsbury Drive, SE

Minneapolis, MN 55455

lakin001@tc.umn.edu

Principal Investigator: Charlie Lakin, PhD 612/624-5005

Public Contact: Sheryl Larson, PhD 612/625-6024; Fax: 612/625-6619

Project Number: H133G080029

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 08 $200,000

Abstract: The focus of this project is the National Core Indicators (NCI) Program, the most widely

used program of outcomes assessment for persons with disabilities in the US. Today 24 states participate in at least bi-annual NCI-based outcome research on a minimum of 400 randomly selected persons with intellectual and developmental (ID/DD) receiving publicly-financed services. Participating

states receive validated, psychometrically tested instrumentation, technical assistance with random

selection procedures, standardized training of interviewers, and a centralized system of data quality

review, coding, and analysis. The purpose of the study is: (1) to merge and analyze the wholly congruent records of more than 10,000 randomly sampled adults from 15 purposely selected, nationally

distributed states to examine the interactions among individual characteristics, service delivery models

and settings, and individual outcomes and experiences; and (2) to carefully evaluate and refine, as

needed, the measures and methods of the NCI program to assure maximum validity and utility in

assessing quality of support to persons with ID/DD. Merging the wholly congruent state data sets

provides a unique opportunity to use and refine a research data set of incomparable size, flexibility,

national representation, and consistency with national goals for supports to persons with ID/DD.
5-8 NIDRR Program Directory FY 2008 - Disability Demographics

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Using the U.S. Equal Employment Opportunity Commission (EEOC)

Employment Discrimination Charge Data System for Research and

Dissemination Purposes

Cornell University

Employment and Disability Institute

School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853

smb23@cornell.edu

www.ilr.cornell.edu/edi/p-eeoc.cfm

Principal Investigator: Susanne Bruyère, PhD

Public Contact: 607/255-9536 (V); 607/255-2891 (TTY); Fax: 607/255-2763

Project Number: H133G040265

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000; FY 07 (No-cost extension

through 9/30/2008); FY 08 (No-cost extension through 9/30/2009)

Abstract: Using data from the Equal Employment Opportunity Commission (EEOC) Charge Data

System (CDS), this project analyzes trends in employment discrimination charges related to the ADA

and other laws. The CDS collects data on employment discrimination charges covered under Title I of

the ADA, as well as data on charges related to other laws. It contains information on (a) the demographic characteristics of charging parties, such as gender, racial and ethnic status, age, location, and

type of disability; (b) type of discriminatory behavior, such as refusal to hire, failure to provide reasonable accommodation, unfair discharge, harassment; and (c) charge outcomes, such as withdrawal with

benefits, settlements, and other such outcomes. The project uses these data to explore trends over time

and across the states, and investigate whether these trends are related to changes in the composition of

the population with disabilities and changes in labor market conditions. Using regression analysis, the

project explores the relationship of the ADA-related charge rates to state-level economic conditions,

government program participation by people with disabilities, and other state-level characteristics. The

project also examines the changes in the composition of charges over time with respect to the characteristics of charging party, the size and industry of the employer, the type of alleged discriminatory

treatment, differences between claims in the EEOC and FEPA offices; differences in trends and types

of charges between the ADA and other statutes (specifically the ADA and IDEA); and where relevant,

the potential impact of Supreme Court decisions within trends changes in these compositional changes.

To achieve a better understanding of patterns in ADA-related charges, the project seeks input from and

works with the EEOC and selected disability advocacy organizations, such as the select state Fair

Employment Protection Agencies

(FEPAs), state protection and advocacy agencies, and as needed the American Association of Retired

Persons (AARP), the American Association of Persons with Disabilities (AAPD), the National Disability Rights Network (NDRN; formerly called the National Association of Protection and Advocacy

Systems), and the law firm of Powers, Pyles, Sutter, and Verville (PPSV).
NIDRR Program Directory FY 2008 - Disability Demographics 5-9

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Impact of Prospective Payment and Rehabilitation Outcomes

University of Texas Medical Branch

301 University Boulevard

Galveston, TX 77555

kottenba@utmb.edu

Principal Investigator: Kenneth J. Ottenbacher, PhD

Public Contact: 409/747-1637; Fax: 409/747-1638

Project Number: H133G080163

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 08 $199,386

Abstract: This project examines associations and trends in key rehabilitation outcomes before and

after the introduction of prospective payment (PPS). Research objectives include: (1) to examine the

impact of differences in the scoring and recording methods used to measure functional status pre-PPS

(FlM Instrument) and under the PPS (Inpatient Rehabilitation Facility-Patient Assessment Instrument);

and (2) to compare associations and trends in outcomes for three years pre-PPS (1999-2001) to three

years under the PPS (2002-2004). Outcomes examined include length of stay, functional status at

admission, discharge and follow-up (3-6 months), living setting pre-admission, incidence of hospital

readmission, and mortality. Research objectives are addressed using two data sets. The Uniform Data

System for Medical Rehabilitation (UDSMR) is used to examine the impact of changes in rating and

coding functional assessment data introduced with the PPS in 2002 (Objective 1). Association and

trends are explored using both the UDSMR database and Centers for Medicare and Medicaid Services

(CMS) files (Objective 2). The CMS information includes the Inpatient Rehabilitation Facilities-Patient

Assessment Instrument file, the Medicare Provider Analysis and Review file, and the Medicare Denominator file. The project examines data from major impairment groups including stroke, brain

dysfunction, spinal cord injury, neurological deficits, and orthopedic conditions. Hierarchical linear and

quasi-likelihood statistical models are used to analyze trends in data prior to PPS (three years) and

during PPS (three years) adjusting for relevant covariates (age, gender, race/ethnicity, comorbidities,

etc.). Finally, the project provides the information necessary for making evidence-based decisions

related to future changes in rehabilitation practice, payment, and policy.
5-10 NIDRR Program Directory FY 2008 - Disability Demographics

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Virginia

A National Assessment of the Rates and Correlates of Alcohol and

Other Drug Use by College Students with Disabilities

Virginia Commonwealth University

School of Allied Health Professions

Department of Rehabilitation Counseling

1112 East Clay Street

Richmond, VA 23298

Principal Investigator: Steven L. West, PhD, CRC

Public Contact: 804/827-0921; Fax: 804/828-1321

Project Number: H133G080123

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 08 $199,999

Abstract: This project studies the rates of substance use and abuse, the correlates of such use, and the

impact of such use on college students with disabilities. These students face a number of challenges

that may inhibit their performance and limit their acquisition of college degrees. The failure to perform

to standard or to complete a college degree can have severe and long lasting consequences in terms of

lifelong employment, community integration, and the overall health and well being of persons with

disabilities. Although there are many barriers to the successful acquisition of a college degree, much of

the current research in the field of higher education centers on the negative effects of substance use and

abuse. Use of alcohol and other drugs by college students, regardless of disability, is associated with a

number of negative outcomes. Notable among these are school failure and drop-out, a wide variety of

health concerns, and a number of legal issues. To date, little is known about the rates of substance use

and abuse by college students with disabilities. Research with general samples of people with disabilities note that such individuals abuse alcohol and other drugs at rates 10 to 20 times that of the general

population; preliminary studies with students with disabilities suggest that they are also heavy users of

alcohol and other drugs. By detailing the state of affairs nationally, this study allows for a broad understanding of the rates of substance use by college students with disabilities; details the impact of such

use on academic performance, health and well being; allows for the determination of factors related to

both substance use and abstinence; aids in the development of prevention efforts; and provides aggressive dissemination of information on such issues to a wide audience of consumers and service providers.
NIDRR Program Directory FY 2008 - Disability Demographics 5-11

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Washington

Assessing the Impact of Medicare-D on SSDI Beneficiaries

Washington State University

Department of Health Policy and Administration

PO Box 1495

Spokane, WA 99210

www.spokane.wsu.edu/Academics/Health_Sciences/HPA/medicare/inde x.asp

Principal Investigator: James J. Kennedy, PhD

Public Contact: 509/368-6971; Fax: 509/358-7984

Project Number: H133G070055

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 07 $199,955; FY 08 $199,706

Abstract: This project employs a multi-method, repeated-measures design to assess the impact of

Medicare-D on younger beneficiaries in four distinct but interrelated studies: (1) quantitative analysis

of access and utilization rates among beneficiaries under age 65, using successive panels of the Medicare Current Beneficiary Survey; (2) qualitative research on the impact of Medicare benefits on employment and continuity of medical care, based on repeated focus groups at two sites; (3) formulary

analysis of coverage for critical medications among competing private Medicare Advantage and

Prescription Drug Plans in Washington State; and (4) ongoing policy analysis of legislative and regulatory changes in Medicare and SSDI. Tracking the impact of the new drug benefit is particularly important for younger adults with disabilities who become eligible for Medicare through the Social Security

Disability Insurance (SSDI) program. Although younger beneficiaries comprise only 14.1 percent of

the total Medicare population, they account for about 17 percent ($71.6 billion) of total program

expenditures. Despite their economic and political importance, younger beneficiaries with disabilities

are routinely overlooked in published Medicare research and policy analysis. Through dissemination of

research findings, this project enhances awareness in the research and policy community of the unique

Medicare-D concerns of younger beneficiaries with disabilities, consistent with the ultimate goal of

improving access to affordable health services for people with disabilities.

Contents

Disability and Rehabilitation Research Projects .................................................................................... 3

Field Initiated Projects (FIPs) .............................................................................................................. 11

Utilization Projects .............................................................................................................................. 12

Knowledge Translation

For NIDRR, knowledge translation (KT) encompasses the multidimensional, active

process of ensuring that new knowledge gained through the course of research

ultimately improves the lives of people with disabilities and furthers their

participation in society. KT involves not only knowledge validation and

dissemination but also the transfer of technology, particularly products and devices,

from the research and development setting to the commercial marketplace to make

possible widespread utilization of the products or devices.

NIDRR Program Directory FY 2008 - Knowledge Translation 7-3

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Alabama

National Spinal Cord Injury Statistical Center (NSCISC)

University of Alabama/Birmingham

SRC 515

1717 Sixth Avenue, South

Birmingham, AL 35249-7330

nscisc@uab.edu

www.uab.edu/nscisc

Principal Investigator: Yuying Chen, MD, PhD 205/934-3320

Public Contact: Vicki Farris 205/934-5049; Fax: 205/934-2709

Project Number: H133A060039

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $625,000; FY 07 $625,000; FY 08 $625,000

Abstract: The National Spinal Cord Injury Statistical Center (NSCISC) at the University of Alabama

at Birmingham has been the home of the National Spinal Cord Injury Model Systems (SCIMS) Data

Center since 1983. The NSCISC continues and expands its current activities and implements innovative new tasks to accomplish the following goals: (1) maintenance of the SCIMS database, (2) highquality data in the SCIMS database, (3) high quality data collected from database participants of all

racial/ethnic backgrounds, (4) rigorous SCIMS database research conducted by all investigators, (5)

enhanced continuity of the SCIMS database, and (6) improved database operations through collaboration. In particular, the project takes advantage of the latest Internet and centralized database technology

to rewrite the database software from its current distributed format to a centralized web-based system,

which will significantly improve the capability to manage new data module projects, increase costefficiency, improve quality control, and enhance data security. To promote best research practices

across the SCIMS, the Center establishes an annual online comprehensive training curriculum for

SCIMS data collectors, conducts evaluative site visits, publishes a guide regarding proper use of the

database, and refines standards on culturally appropriate SCI research. The project includes subcontracts with formerly funded SCIMS centers to continue data collection for patients previously enrolled

in their research. The Center continues to benefit from the active involvement of persons with SCI and

productive partnerships with other NIDRR-funded centers in the design, implementation, and evaluation of these activities.
7-4 NIDRR Program Directory FY 2008 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

Innovative Knowledge Dissemination and Utilization for Disability and

Professional Organizations and Stakeholders

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

psyrehab@bu.edu

Principal Investigator: Marianne Farkas, ScD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133A050006

Start Date: October 01, 2005

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 05 $498,878; FY 06 $493,698; FY 07 $499,966; FY 08 $499,947

Abstract: This project is working collaboratively with the NIDRR, professional and consumer organizations, and stakeholders to develop, test, and apply a process of research standards development,

implementation, and related information dissemination strategies that allows end-users in the rehabilitation field to make informed choices based on the perceived utility of the research available, and in

doing so, promote utilization of rehabilitation research. The project uses well-developed standards to

determine which rehabilitation research results are of sufficient rigor to be worthy of dissemination.

Thus establishing an ongoing, scientific, easily accessible, central resource to help professionals utilize

what works in the disability field. The project has six specific goals: (1) Producing quality standards

for rating rehabilitation research rigor and meaning. A broad range of experts and various stakeholders

participate in consensus building regarding adapting existing standards for rating research rigor, and

create standards for meaning (perceived relevance). In this way, information disseminated will not only

be assessed as to its scientific rigor but also with respect to its relevance and applicability to various

end-users, thus promoting utilization of the research. (2) Project staff, along with NIDRR staff, professional and constituent organizations, and other Knowledge Translation projects assist in developing

standard topic selection criteria and in selecting topical areas for information products. (3) Producing

relevant information products describing the quality and implications of rehabilitation research studies

based on the developed standards. Constituent organizations participate in developing dissemination

plans to translate research syntheses in the identified topical areas into information products relevant for

appropriate constituencies. (4) Creating and testing a prototype interactive website, The Right to Know

Clearinghouse, to implement innovative dissemination strategies for key groups. (5) Evaluating the

output, perceived utility, and outcomes of the Knowledge Translation project using the NIDRR logic

model. Evaluated outcomes include an increase in awareness of research among constituency groups,

an increase in understanding of research rigor and meaning among those groups, and an increase in the

use of research information by end-users. (6) Disseminating the projectÐj:’s findings to stakeholders.
NIDRR Program Directory FY 2008 - Knowledge Translation 7-5

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Center for International Rehabilitation Research Information and

Exchange (CIRRIE-2)

University at Buffalo

The State University of New York

Center for Assistive Technology

515 Kimball Tower

Buffalo, NY 14214

ub-cirrie@buffalo.edu

cirrie.buffalo.edu

Principal Investigator: John Stone, PhD 716/829-3141, ext. 125

Public Contact: Marcia E. Daumen 716/829-3900, ext. 146; Fax: 716/829-2211

Project Number: H133A050008

Start Date: November 01, 2005

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 05 $500,000; FY 06 $500,000; FY 07 $500,000; FY 08 $500,000

Abstract: The Center for International Research Information and Exchange (CIRRIE-2) offers a

comprehensive approach to address the needs of researchers, practitioners, and consumers for researchbased information from international sources. CIRRIE-2 objectives include: Expanding the existing

Database of International Rehabilitation Research; developing an online, multi-lingual, international

encyclopedia of rehabilitation in English, Spanish, and French in collaboration with the Quebec

Institute for Physical Rehabilitation; sponsoring an international conference and workshops on the

International Classification of Functioning, Disability, and Health (ICF); creating a Community of

Practice on the ICF; and cross mapping ICF terms to the thesaurus that is used to search both CIRRIE

and REHABDATA databases. CIRRIE-2 sponsors workshops on the ICF in cooperation with the

American Psychological Association and the WHO North American Collaborating Center (NACC),

and plans an international conference on the ICF in Year 2, in collaboration with the NACC. Additionally, CIRRIE develops new pre-service initiatives in the area of cultural competence for disability

service providers, including: Developing a textbook and two new monographs on cultural competence

for disability service providers; and conducting an international conference on Providing Culturally

Competent Disability Services in collaboration with Toronto-based Joint Centre of Excellence on

Research and Immigration and Settlement. CIRRIE-2 supports collaborative activities between the US

and other countries by conducting four types of international exchange programs: (1) short-term

exchanges of individuals, (2) institutional linkage exchanges, (3) a program for Minority Serving

Institutions, and (4) a program for information gathering for dissemination to US audiences.
7-6 NIDRR Program Directory FY 2008 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Center on Knowledge Translation for Technology Transfer

University at Buffalo

The State University of New York

Center for Assistive Technology

322 Kimball Tower

Buffalo, NY 14214

cat.buffalo.edu/

Principal Investigator: Joseph Lane 716/829-3266

Public Contact: 716/829-3141 (V); 800/628-2281 (TTY); Fax: 716/829-2420

Project Number: H133A080050

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 08 $999,998

Abstract: The objective of this project is to study and apply the theory and practice of knowledge

translation (KT) to the knowledge outputs of NIDRR technology grantees. Goals of this project are

improved understanding of barriers to accomplishing KT for technology transfer (TT) and carriers to

overcome them; advanced knowledge of the best models, methods, and measures for accomplishing

KT for TT; and increased utilization of the validated best practices for KT for TT by the NIDRR

grantees. Research Project 1 synthesizes current knowledge about KT theory and practice related to

accomplishing technology transfer outcomes; establishes parallel models of practices for both knowledge translation and technology transfer; and creates an operational framework for the Knowledge To

Action (KTA) model, by applying the technology transfer methods and measures promulgated by the

Product Development Manager’s Association (PDMA), to create counterparts in knowledge translation. Project 2 establishes parameters for defining new knowledge as an innovation, and establishes

Grantee Innovation Profiles for participating RERC and SBIR grantees in wheeled mobility, sensory

disability, and environmental access technology areas; and interviews representatives for the six categories of knowledge users (i.e., researchers, manufacturers, clinicians, policy makers, consumers,

brokers), to establish Knowledge Value Profiles for each user category. Research Project 3 conducts a

series of six intervention studies in the three technology areas. They communicate a series of randomly

selected innovations to the six user categories, either through standard knowledge dissemination

practices, or through knowledge translation practices applied through the operational KTA model.

Development Project 1 conducts a series of at least six technology transfer demonstration projects,

working in collaboration with corporate partners, while RERC and/or SBIR grantees interact as

participant observers. Development Project 2 creates a knowledgebase consisting of a data base

structure customized for access by each category of knowledge user based on their respective value

systems, along with all DRRP training materials publicly available in accessible and usable forms. A

Utilization Project encourages NIDRR grantees to use the DRRPnf:’s materials, and implement the

operational KTA model, through coordinated dissemination, training, and technical assistance projects.

This project also promotes the diffusion and utilization of innovative research-based knowledge by

targeting each of the six categories of knowledge users with a parallel coordinated program of the same

multiple methods.
NIDRR Program Directory FY 2008 - Knowledge Translation 7-7

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Research Utilization Support and Help (RUSH) Project

SEDL

4700 Mueller Boulevard

Austin, TX 78723

john.westbrook@sedl.org

www.researchutilization.org

Principal Investigator: John Westbrook, PhD

Public Contact: 800/761-7874 (V/TTY); Fax: 512/476-2286

Project Number: H133A031402

Start Date: June 01, 2003

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 03 $350,000; FY 04 $350,000; FY 05 $350,000; FY 06 $350,000; FY 07

$350,000; FY 08 (No-cost extension through 5/31/2009)

Abstract: The RUSH project develops and tests models for increasing the effective use of NIDRR

research results. The RUSH Project intends to assess utilization successes in terms of benefits produced for intended user audiences including: people with disabilities and their families, disability

researchers, and disability service providers, among others. The goal is to expand awareness, strategies, and evaluation of knowledge utilization outcomes among NIDRR-supported researchers in order

to increase access and use of research results by those who can benefit the most from them. The

objectives for the RUSH Project are: (1) to assess the use of and obstacles to the dissemination/utilization of NIDRR-supported disability research by a wide range of potential target audiences; (2) to

develop a variety of strategies and approaches designed to accommodate differing topics of disability

research information and diverse target audiences; (3) to demonstrate a variety of new strategies and

approaches to improve/achieve utilization outcomes of disability research findings; (4) to disseminate

information about knowledge utilization models and their associated effectiveness by topic, target

audience, and level of knowledge transfer needed in order to increase the use of NIDRR grantees’

research outcomes; (5) to provide new and current NIDRR researchers with information they can use

to strengthen their dissemination and utilization approaches; and (6) to provide technical assistance to

NIDRR researchers to build understanding, skills, and resources in developing, implementing, and

evaluating knowledge utilization models within NIDRR project designs.
7-8 NIDRR Program Directory FY 2008 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

National Center for the Dissemination of Disability Research (NCDDR)

SEDL

4700 Mueller Boulevard

Austin, TX 78723

lin.harris@sedl.org

www.ncddr.org

Principal Investigator: John Westbrook, PhD

Public Contact: Lin Harris, Information Specialist 800/266-1832 (V/TTY); Fax: 512/476-2286

Project Number: H133A060028

Start Date: January 01, 2006

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 06 $750,000; FY 07 $750,000; FY 08 $750,000

Abstract: The goal of the National Center for the Dissemination of Disability Research (NCDDR) is

to promote the utilization of research results developed through NIDRR grants/contracts. Major areas

of work of the NCDDR include: (1) Research designed to collect information that assists in identifying

the needs and most likely strategies that assist in matching dissemination practices with intended user

audiences. Activities include conducting annual surveys, focus groups, surveys, and annual reporting

of state-of-the-art information about NIDRR grantees’ dissemination successes. (2) Demonstration

conducted to determine the effectiveness of new strategies and approaches in achieving intended

dissemination and utilization outcomes. Activities include developing and using innovative web-based

mechanisms, increasing common portal access to substantive English and Spanish language resources

of grantees, and developing outreach strategies for under-represented audiences. (3) Dissemination and

Utilization implemented not to support the simple distribution of materials and other resources but

rather the use of research outcomes in meaningful ways by those that can most benefit from their use.

Activities include production of print and web-based informational products, networking of grantees to

maximize outreach impact, and developing networks with a variety of research stakeholder groups for

information and strategy exchanges. (4) Technical Assistance provided to NIDRR grantees to build

understanding, skills, and resources related to the dissemination and utilization of their disability

research outcomes. Activities include providing onsite and offsite assistance in planning effective

dissemination efforts, providing direct assistance to grantees with targeted dissemination efforts, and

assisting in designing evaluation strategies to measure dissemination and utilization outcomes.
NIDRR Program Directory FY 2008 - Knowledge Translation 7-9

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Virginia

Disability and Business Technical Assistance Centers: Coordination,

Outreach, and Research Center

Virginia Commonwealth University

Department of Rehabilitation Counseling

1112 East Clay Street; P.O. Box 980330

Richmond, VA 23298-0330

btmcmaho@vcu.edu

www.adata.org

Principal Investigator: Brian T. McMahon, PhD 804/827-0917

Public Contact: Cynthia Young 804/828-3875; Fax: 804/828-1321

Project Number: H133A060087

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 06 $849,957; FY 07 $849,968; FY 08 $849,991

Abstract: This coordination, outreach, and research center (CORC) expands and enhances the activities of the regional system of Disability and Business Technical Assistance Centers (DBTACs), guided

by the principles of evidence-based practice and knowledge translation, with a dual emphasis on

communities of practice and demand-side job placement. The CORC objectives are to: (1) improve

public access to ADA information by creating a definitive ADA web site, DBTAC-IN, which includes

a compendium of DBTAC materials, databases, publications, products, tools, and activities; (2) create

a CORC Research Review Board to coordinate, support, and review new evidence-based products

and publications, including original CORC research, and assess their effectiveness and impact on

policy and practice; (3) increase the research capacity of the regional DBTACs network to both conduct and utilize quality research by modeling such behavior and by providing direct and meaningful

consultation to regional DBTACs to facilitate their success; (4) coordinate dissemination of regional

DBTAC and CORC publications and products in concert with appropriate NIDRR research and

dissemination centers; (5) translate DBTAC evidence reports, publications, and products into practice

guidelines, quality improvement products, and technical assistance tools; and (6) host five planning

conferences with regional DBTACs, and three research conferences in Project Years III, IV, and V in

order to demonstrate the added value of evidence-based practice in the DBTAC network. Original

CORC research has an employment emphasis. CORC activities include 19 original research projects

involving the National EEOC ADA Research Project, 15 training activities in collaboration with the

regions, dissemination and outreach projects, research and consultation with Regional DBDTACs,

technical assistance projects, and program evaluation.
7-10 NIDRR Program Directory FY 2008 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

Model Systems Knowledge Translation Center (MSKTC)

University of Washington

Center for Human Development and Disability

Center for Technology and Disability Studies

1959 NE Pacific Street, HSB BB-919

Box 356490

Seattle, WA 98195

msktc@u.washington.edu

msktc.washington.edu

Principal Investigator: Kurt Johnson, PhD

Public Contact: 206/543-3677; Fax: 206/543-4779

Project Number: H133A060070

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 06 $598,163; FY 07 $598,833; FY 08 $599,876

Abstract: The Model Systems Knowledge Translation Center (MSKTC) facilitates the dissemination

of research-to-practice and consumer education for the model systems programs in traumatic brain

injury (TBI), spinal cord injury (SCI), and burn injury. The MSKTC knowledge translation and

dissemination efforts focus on research conducted by the model systems programs, identified best

practices, and clinician and consumer education materials developed by the model systems. The

MSKTC also works collaboratively with members of the MSKTC Research Advisory Board and

experts in TBI, SCI, and burn injury to conduct systematic reviews of key areas of rehabilitation

research relevant to the model systems projects. The MSKTC is housed within the University of

Washington’s Center for Technology and Disability Studies in the Center for Human Development

and Disability and builds on previously funded NIDRR knowledge translation efforts.
NIDRR Program Directory FY 2008 - Knowledge Translation 7-11

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

EVIDAAC: A Database of Appraised Evidence in Augmentative and

Alternative Communication

Northeastern University

Department of Speech, Language, Audiology, and Pathology

151B Forsyth

Boston, MA 02115-5000

r.schlosser@neu.edu

Principal Investigator: Ralf W. Schlosser, PhD

Public Contact: 617/373-3785; Fax: 617/373-8756

Project Number: H133G070150

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 07 $195,525; FY 08 $199,910

Abstract: This project develops EVIDAAC, an accessible and usable database of appraised research

evidence in augmentative and alternative communication (AAC) for practitioners (speech-language

pathologists, occupational therapists, physical therapists, special educators, rehabilitation engineers,

etc.), individuals using AAC, and their families. EVIDAAC provides access to pre-filtered evidencebased practice by critically appraising studies (randomized control trials [RCTs], non-RCTs, case

series, single-subject experimental designs) and systematic reviews. This saves time and reduces the

skill-burden associated with having to appraise evidence, a documented barrier to the utilization of

EBP. EVIDAAC is developed in accordance with published quality criteria for health-related web sites

using formative and process evaluation. Accessible web design principles are integrated into the

development of the database, with regular assessment using Web Accessibility Initiative principles and

guidelines. Its usability is tested with rigorous technologies, including structured usability tasks in

controlled laboratory situations and the determination of utilization patterns in real-life circumstances

via web-log analysis. Results gleaned feed back into improving the database.
7-12 NIDRR Program Directory FY 2008 - Knowledge Translation

Utilization Projects Utilization Projects

Maryland

National Rehabilitation Information Center (NARIC)

HeiTech Services, Inc.

8201 Corporate Drive, Suite 600

Landover, MD 20785

naricinfo@heitechservices.com

www.naric.com

Principal Investigator: Mark X. Odum

Public Contact: Information Specialists 800/346-2742 (V); 301/459-5984 (TTY); 301/459-5900 (V);

Fax: 301/459-4263

Project Number: ED-08-CO-0095

Start Date: June 30, 2008

Length: 24 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 08 $828,331

Abstract: The National Rehabilitation Information Center (NARIC) maintains a research library of

more than 65,000 documents and responds to a wide range of information requests, providing facts

and referral, database searches, and document delivery. Through telephone and online information

referral, NARIC disseminates information gathered from NIDRR-funded projects, other federal

programs, and from journals, periodicals, newsletters, films, and videotapes. NARIC maintains

REHABDATA, a bibliographic database on rehabilitation and disability issues, both in-house and

online. Users are served by telephone, mail, electronic communications, or in person. NARIC also

prepares and publishes the annual NIDRR Program Directory, available in database format from

NARIC’s web site.
NIDRR Program Directory FY 2008 - Knowledge Translation 7-13

Utilization Projects Utilization Projects

Maryland

ABLEDATA

ORC Macro

8630 Fenton Street, Suite 930

Silver Spring, MD 20910

abledata@macrointernational.com

www.abledata.com

Principal Investigator: Katherine Belknap 301/608-8998, ext. 105

Public Contact: 800/227-0216 (V); 301/608-8998 (V); 301/608-8912 (TTY); Fax: 301/608-8958

Project Number: ED-04-CO-0018/0007

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 08 $779,573

Abstract: This project maintains and expands the ABLEDATA product information database, develops information and referral services that are responsive to the special technology product needs of

consumers and professionals, and provides the data to major dissemination points to ensure wide

distribution and availability of the information to all who need it. The ABLEDATA database contains

information on more than 34,000 commercially produced and custom-made assistive devices. Requests

for information are answered via telephone, mail, electronic communications, or in person.

Contents

ADA Technical Assistance Projects ...................................................................................................... 1

ADA Technical Assistance Programs

The Americans with Disabilities Act (ADA) opens more opportunities for persons

with disabilities. It also places certain responsibilities on employers, transit and

communication systems, state and local governments, and public accommodations.

To assist covered parties to understand and comply with the ADA, NIDRR has

funded a network of grantees to provide information, training, and technical

assistance to businesses and agencies with duties and responsibilities under the ADA.

NIDRR Program Directory FY 2008 - ADA Technical Assistance Programs 8-3

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region I - CT, ME, MA, NH, RI, and VT

New England Disability and Business Technical Assistance Center -

Region I

Adaptive Environments Center, Inc.

200 Portland Street, First Floor

Boston, MA 02114

adainfo@newenglandada.org

adaptiveenvironments.org/neada/site/home

Principal Investigator: Oce Harrison, EdD, Project Director 617/695-1225, ext. 227

Public Contact: 800/949-4232 (V/TTY in CT, ME, MA, NH, RI, and VT); 617/695-1225 (V/TTY);

Fax: 617/482-8099

Project Number: H133A060092

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $1,026,116; FY 07 $1,033,136; FY 08 $1,053,190

Abstract: The New England DBTAC provides technical assistance, training, and information dissemination for Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. This

DBTAC continues these core services that are the bedrock of voluntary ADA compliance but also

restructures the program to be more responsive and rigorous with an expectation of improving employment outcomes for people with disabilities. A set of partnerships and collaborations, led by the Center

for Labor Market Studies at Northeastern University, conducts evidence-based research with collaborating organizations to implement comprehensive intervention and descriptive research strategies. The

target populations for this DBTAC are students with disabilities and their diverse support services at

institutions of higher education, and employers in demand-driven, high growth industries in New

England. Goals for this DBTAC are to: improve understanding of rights and responsibilities under the

ADA; identify innovative approaches and tested solutions that increase employment; produce and

disseminate a “Guide to New England Jobs” for individuals with disabilities; publish results of findings

in refereed journals; and utilize networks of new collaborators to disseminate information, materials,

and research findings.
8-4 NIDRR Program Directory FY 2008 - ADA Technical Assistance Programs

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region II - NJ, NY, PR, and VI

Disability and Business Technical Assistance Center - Northeast

Cornell University

Employment and Disability Institute

School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853-3901

northeastada@cornell.edu

www.northeastada.org

Principal Investigator: S. Antonio Ruiz-Quintanilla, Project Director 607/255-2132

Public Contact: 800/949-4232 (V/TTY, in NJ, NY, PR, and VI); 607/255-6686 (V/TTY); Fax: 607/

255-2763

Project Number: H133A060088

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $1,105,000; FY 07 $1,105,000; FY 08 $1,105,000

Abstract: The Disability and Business Technical Assistance Center - Northeast (DBTAC-Northeast)

serves Region II to ensure the full implementation of the Americans with Disabilities Act of 1990

(ADA) through its core activities: technical assistance, training, information dissemination, and research. The DBTAC-Northeast target audiences include individuals with disabilities and their

caregivers, employers, businesses, state and local government entities, and educational institutions in

Federal Region II (New York, New Jersey, Puerto Rico, and the US Virgin Islands). Information

dissemination activities include a comprehensive website, a newsletter, technical bulletins, and materials dissemination through networks and regional partners. Technical assistance activities focus on

responding to requests for information received via an 800 phone line, submitted via the website, and

received through email. Training activities are comprehensive in both approach and delivery, designed

to meet the needs of educational organizations, employers, advocacy organizations, businesses, Title II

organizations, individuals with disabilities, caregivers, and disability service organizations. Topics

include advanced ADA issues related to employment, physical and programmatic access, state and

federal laws and codes and relevant ADA court decisions, and accessible technology. Training is

offered through a variety of open-enrollment programs at the state and local levels as well as provided

on-site. Lastly, the DBTAC-Northeast team conducts targeted, rigorous research and evaluation

activities designed to inform and develop innovative and effective approaches addressing critical

disability questions to help ensure that services and interventions delivered by the DBTAC-Northeast

are effective and relevant to the needs of the individuals and communities it serves.
NIDRR Program Directory FY 2008 - ADA Technical Assistance Programs 8-5

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region III - DC, DE, MD, PA, VA, and WV

DBTAC: Mid-Atlantic ADA Center

TransCen, Inc.

451 Hungerford Drive, Suite 700

Rockville, MD 20850-4151

adainfo@transcen.org

www.adainfo.org

Principal Investigator: Richard G. Luecking, PhD 301/424-2002

Public Contact: Marian S. Vessels, Project Director 800/949-4232 (V/TTY, in DC, DE, MD, PA,

VA, and WV); 301/217-0124 (V/TTY); Fax: 301/217-0754

Project Number: H133A060085

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $1,098,929; FY 07 $1,098,929; FY 08 $1,098,929

Abstract: The DBTAC: Mid-Atlantic ADA Center provides technical assistance, training, and information dissemination for Delaware, the District of Columbia, Maryland, Pennsylvania, Virginia, and

West Virginia. The major goals of this DBTAC are to: improve the understanding by individuals and

entities of their rights and responsibilities under the ADA; build the capacity of local and state entities

to provide technical assistance and training on the ADA and related topics; improve employment

outcomes of people with disabilities; and increase access by people with disabilities to lodging and

other services from, as well as employment opportunities within, the high growth hospitality industry.

There are four major areas of activity: (1) training, technical assistance, and dissemination to general

ADA constituencies on all titles of the Act; (2) training and technical assistance to individual statewide

coalitions to increase the capacity of other organizations to provide locally focused technical assistance

on all titles of the ADA; (3) identification of problematic areas where research and informational

campaigns might aid in the avoidance of or solutions to problems associated with the ADA, especially

in the high growth hospitality industry; and (4) research on organizational and individual factors that

affect decisions to provide reasonable accommodations and the resulting employment outcomes.
8-6 NIDRR Program Directory FY 2008 - ADA Technical Assistance Programs

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region IV - AL, FL, GA, KY, MS, NC, SC, and TN

DBTAC: Southeast ADA Center — Region IV

Syracuse University

Burton Blatt Institute

1419 Mayson Street

Atlanta, GA 30324

sedbtacproject@law.syr.edu

www.sedbtac.org

Principal Investigator: Peter Blanck, PhD, JD; Shelley Kaplan; 315/443-9703 (Blanck); 404/541-

9001 (Kaplan)

Public Contact: Shelley Kaplan, Project Director 800/949-4232 (V/TTY, in AL, FL, GA, KY, MS,

NC, SC, and TN); 404/541-9001 (V/TTY); Fax: 404/541-9002

Project Number: H133A060094

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,105,000; FY 07 $1,105,000; FY 08 $1,105,000; FY 09 $1,105,000

Abstract: The DBTAC: Southeast ADA Center (Southeast DBTAC) provides technical assistance,

training, and information dissemination for Alabama, Florida, Georgia, Kentucky, Mississippi, North

Carolina, South Carolina, and Tennessee. Southeast DBTAC meets ADA-related information, training, and technical assistance needs of multiple public and private stakeholders through the provision of

five core services: (1) information dissemination, (2) education and training, (3) technical assistance,

(4) information referral, and (5) public awareness events. The Southeast DBTAC’s research plan

extends the state of knowledge about employer corporate culture and business practices, and ADA

impact on civic action to reduce and eliminate barriers to full civic, social, and economic participation

for Americans with disabilities. The Southeast DBTAC is lead by a consortium that includes four

nonprofit institutions recognized for their knowledge of civil rights protections and impact across

covered environments, access, and use of assistive technology (AT), employment and independent

living, and consumer self-direction and advocacy. The organizations with a history of collaborative

activity are Burton Blatt Institute of Syracuse University (BBI), Center for Assistive Technology and

Environmental Access (CATEA) at Georgia Institute of Technology (GA Tech), Living Independence

for Everyone (LIFE) of Jackson, Mississippi, and Partnerships in Assistive Technology (PAT) of North

Carolina. To continue responsiveness to employers, large and small within the region, the Southeast

DBTAC established a Business Leadership Council (BLC) with ten stakeholders with a record of

hiring and advancing workers with disabilities. The BLC provides advice and important linkages to the

business community throughout the southeast to exchange research findings and knowledge that

improves opportunities for employment for persons with disabilities. Half of core staff are persons with

disabilities and/or represent historically underrepresented groups because of race, gender, national

origin, and age. People with disabilities continue to direct core components of the Center’s activities

related to training and technical assistance and information dissemination. The Southeast DBTAC has

an extensive collaborative network of over 99 local affiliates in all eight states in the region that builds

on the strengths and experiences of a diverse cross-section of individuals with and without disabilities

representing disability, business, and governmental entities.
NIDRR Program Directory FY 2008 - ADA Technical Assistance Programs 8-7

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region V - IL, IN, MI, MN, OH, and WI

DBTAC: Great Lakes ADA Center

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Room 405

Chicago, IL 60608-6904

gldbtac@uic.edu

www.adagreatlakes.org

Principal Investigator: Robin A. Jones, Project Director 312/996-1059

Public Contact: 800/949-4232 (V/TTY, in IL, IN, MI, MN, OH, and WI); 312/413-1407 (V/TTY);

Fax: 312/413-1856

Project Number: H133A060097

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,105,000; FY 07 $1,105,000; FY 08 $1,105,000

Abstract: The Great Lakes Disability and Business Technical Assistance Center (DBTAC) promotes

awareness of the ADA to targeted audiences through provision of technical assistance, training, and

material dissemination regarding the ADA. In addition, the Center engages in rigorous, researchrelated activities that contribute to a research agenda focused on but not limited to (1) the employment

of people with disabilities, and (2) the impact that individual knowledge and experience with the

utilization of technology in postsecondary education has on the employment outcomes of individuals

with disabilities as they transition from postsecondary education to employment. The Great Lakes

DBTAC provides timely, responsive, and proactive services utilizing a comprehensive service delivery

model. The technical assistance, training, and information needs of the individual, employers, specifically those in high growth industries, business, government, educational entities, and disabled veterans

employment programs are a part of on-going needs assessment, and programs and activities are tailored

accordingly. The Center tracks emerging issues which are of interest to its target audiences and develops strategies to address their informational and technical assistance needs. Strategies include: (1)

operation of a toll-free number for responding to questions or providing referral; (2) enhancement of

the Center’s existing network of individuals and organizations who can provide on-site consultation,

technical assistance, and training as needed; (3) training events and activities at the local, state, and

regional level focused on raising awareness of the ADA and disseminating the findings which result

from the Center and its collaborators’ research-related activities; (4) identification and dissemination of

best practices related to the recruitment, hiring, and retention of qualified individuals with disabilities

by employers and employment training programs; and (5) utilization of technology to promote the

exchange of information including a web site, listservs, e-newsletters, multifaceted distance learning

strategies and techniques, self-paced learning, and web-based assessment tools. Collaborators include

but are not limited to the network of DBTACs, relevant NIDRR-funded projects, State Technology

Act grantees, and Department of Labor grantees (WIA, Small Business Development Centers, JAN,

etc.), as well as employer and business organizations such as the Business Leadership Network,
8-8 NIDRR Program Directory FY 2008 - ADA Technical Assistance Programs

Society of Human Resource Management, State Chambers of Commerce, and National Federation of

Independent Business chapters. In addition to these groups, the Center continues to act as a catalyst for

activities that take place at the local and state level through collaboration between the business, government, and disability communities to promote awareness and voluntary compliance with the ADA. At

the regional level, the Center relies heavily on the guidance of State Steering Committees and incorporates new structures to inform and direct the Center’s activities including the newly established Regional Business Advisory Committee.
NIDRR Program Directory FY 2008 - ADA Technical Assistance Programs 8-9

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VI - AR, LA, NM, OK, and TX

Southwest Disability and Business Technical Assistance Center

(Southwest DBTAC-Region VI)

The Institute for Rehabilitation and Research (TIRR)

Independent Living Research Utilization (ILRU)

2323 South Shepherd Boulevard, Suite 1000

Houston, TX 77019-7024

dlrp@ilru.org

www.dlrp.org

Principal Investigator: Wendy Wilkinson, Project Director

Public Contact: 800/949-4232 (V/TTY, in AR, LA, NM, OK, and TX); 713/520-0232 (V); 713/520-

5136 (TTY); Fax: 713/520-5785

Project Number: H133A060091

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $1,104,007; FY 07 $1,104,738; FY 08 $1,104,885

Abstract: The Southwest DBTAC provides a comprehensive array of training, technical assistance,

and dissemination services on the ADA and other disability-related laws in the five states of Federal

Region VI. The goals of these activities are to improve the employment outcomes of individuals with

disabilities and maximize their full inclusion into society. Through a collaborative structure of partners,

the Southwest DBTAC provides an array of services including: (1) research activities that identify

impediments to compliance with the ADA and individuals’ access to technology, postsecondary

education, and the workforce, as well as tested solutions and innovative approaches to eliminate these

impediments; (2) training activities that offer comprehensive, accurate, and timely information on the

ADA’s requirements, developments in case law, policy, and implementation to promote compliance

with the ADA; (3) dissemination activities that increase knowledge about the ADA and DBTAC

services through an effective, coordinated resource network for Region VI; and (4) technical assistance

activities that respond to the needs of individuals and entities on the ADA and foster the development

of new and promising practices that can be shared with others. SEDBTAC’s network includes such

organizations as the New Mexico Technology Assistance Project, the Southwest Education Development Laboratory, Arkansas Technology and Curriculum Access Center, Bureaus of Apprenticeship

Training or State Apprenticeship Councils in each state, Valley Association of Independent Living,

North Harris College, and other organizations and businesses that have demonstrated success in

improving the lives of individuals with disabilities.
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ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VII - IA, KS, MO, and NE

DBTAC - Great Plains ADA Center — Region VII

University of Missouri/Columbia

100 Corporate Lake Drive

Columbia, MO 65203

ada@missouri.edu

www.adaproject.org

Principal Investigator: Jim de Jong, Project Director

Public Contact: 800/949-4232 (V/TTY, in IA, KS, MO, and NE); 573/882-3600 (V/TTY); Fax: 573/

884-4925

Project Number: H133A060089

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $458,330; FY 07 $1,100,000; FY 08 $1,100,000

Abstract: The Great Plains DBTAC provides technical assistance, training, and information dissemination for Iowa, Kansas, Missouri, and Nebraska. The Center provides the core services of material

dissemination, technical assistance and training, and awareness to its target populations of people with

disabilities, disability organizations, policy makers, public rehabilitation providers, employers, businesses, state and local governments, educators, design professionals, legal professionals, and the

media. In addition, the Center includes a research model that can measure changes in employment,

commerce, and community in terms of accessibility, receptivity, and active participation. Research

conducted by the Washington University School of Medicine focuses on community participation and

employment. The University of Kansas continually reviews emerging literature and research findings

to improve core services and research activities. Paraquad, a Center for Independent Living, facilitates

input from consumers at all stages of service provision and research, and represents the perspective of

the intended beneficiaries of the project, people with disabilities. Additional quality assurance of the

research and core services is provided by an Advisory Committee representing all parts of the region

and professional disciplines involved in this project. Great Plains DBTAC is the lead sponsor of the

ADA Symposium, THE Annual National ADA Training in St. Louis (www.adasymposium.org).
NIDRR Program Directory FY 2008 - ADA Technical Assistance Programs 8-11

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VIII - CO, MT, ND, SD, UT, and WY

DBTAC Rocky Mountain ADA Center — Region VIII

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

rmdbtac@mtc-inc.com

www.adainformation.org

Principal Investigator: Jana Copeland, PhD, Project Director 719/444-0268

Public Contact: 800/949-4232 (V/TTY, in CO, MT, ND, SD, UT, and WY); 719/444-0268 (V/

TTY); Fax: 719/444-0269

Project Number: H133A060079

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,105,000; FY 07 $1,105,000; FY 08 $1,105,000

Abstract: This mission of the DBTAC Rocky Mountain ADA Center is to provide individuals and

organizations in Colorado, Montana, North Dakota, South Dakota, Utah, and Wyoming with information on the Americans with Disabilities Act (ADA). MTC has developed a program of technical

assistance based on the concept of mass customization to address the specific needs of target groups

across the region. Training activities take advantage of technology and new theories of training to

ensure maximum impact. Dissemination provides tailored materials that provide actionable information

for the specific needs of target groups. The capacity of this DBTAC is expanded through an ADA

Leadership Network of 30-35 experts from across the region. To inform the technical assistance

delivered by the DBTAC and to produce evidence-based reports on ADA implementation, MTC has

allocated 15 percent of the DBTAC project budget to a coherent, sustained research agenda. Research

is conducted by a team of research organizations from across the region, including Dr. Martin Blair at

the Utah State University Center for People with Disabilities, Dr. Kathy Laurin at the University of

Montana Rural Institute, and Patricia Yeager, a doctoral candidate at the University of Northern Colorado. The team is engaged in an initial program of research that has been coordinated through the

DBTAC CORC. The focus of the project’s ADA research agenda is improving employment outcomes

for people with disabilities. The results of the DBTAC research program are used to inform technical

assistance efforts by assessing the efficacy of the DBTAC’s core functions and translating new research results into the technical assistance process. The DBTAC program includes an extensive plan of

evaluation based on reviewing operational activities monthly and performance metrics quarterly and

annually. The output and outcome evaluation is based on the DBTAC logic model developed by MTC

over the past several years.
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ADA Technical Assistance Projects ADA Technical Assistance Projects

Region IX - AZ, CA, HI, NV, and the Pacific Basin

Disability and Business Technical Assistance Center (DBTAC) —

Pacific ADA Center

Public Health Institute

555 12th Street; Suite 130

Oakland, CA 94607-4046

adatech@adapacific.com

www.adapacific.org

Principal Investigator: Erica C. Jones, Project Director 510/285-5600 (V/TTY)

Public Contact: 800/949-4232 (V/TTY, in AZ, CA, HI, NV, and the Pacific Basin); 510/285-5600

(V/TTY); Fax: 510/285-5614

Project Number: H133A060098

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,105,000; FY 07 $1,105,000; FY 08 $1,105,000

Abstract: The Pacific DBTAC provides technical assistance, training, and information dissemination

for Arizona, California, Hawaii, Nevada, and the Pacific Basin. The program places a special emphasis on increasing employment, reasonable accommodation, and retention of persons with disabilities -

particularly through outreach to high growth industries - and on enhancing participatory/community

living opportunities for persons with disabilities. In addition to enhancements in established training,

dissemination, and technical assistance services, the program includes a research program designed to

enhance compliance with ADA rules and regulations, expand employment and community living for

persons with disabilities, and make significant contributions to the literature in the field. The research

program includes two randomized, controlled trials operated by the Center in collaboration with the

DBTAC Coordination, Outreach, and Research Center; a collaborative research initiative led by

Cornell University that includes a partnership with three additional DBTACs and the Society for

Human Resource Management (SHRM); and two five-year special initiatives operated in conjunction

with the Center’s training and technical assistance programs - one to test the effectiveness of selected

online disability-related training modules and the other to develop innovative outreach and training

approaches directed toward the hospitality industry.
NIDRR Program Directory FY 2008 - ADA Technical Assistance Programs 8-13

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region X - AK, ID, OR, and WA

Disability and Business Technical Assistance Center (DBTAC) —

Northwest

University of Washington

The Center for Continuing Education in Rehabilitation

6912 220th Street SW, Suite 105

Mountlake Terrace, WA 98043

dbtacnw@u.washington.edu

www.dbtacnorthwest.org/

Principal Investigator: Kathe Matrone, PhD 425/771-7436

Public Contact: 800/949-4232 (V/TTY, AK, ID, OR, and WA); 425/248-2480 (V); Fax: 425/774-

9303

Project Number: H133A070048

Start Date: August 01, 2008

Length: 48 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 07 $467,600; FY 08 $1,105,000

Abstract: The Northwest DBTAC provides information, training, and technical assistance on the

ADA to educational organizations, employers, advocacy organizations, state and local governments,

disability service organizations, parents, and individuals with disabilities in Alaska, Idaho, Oregon, and

Washington. Core services include: technical assistance provided by phone, Internet, email, and in

person; information dissemination in electronic and print formats, including a comprehensive website,

quarterly newsletter, etc.; education and training on various aspects of the ADA using a variety of

modalities, including teleconferences, web-based multimedia events, and face-to-face; and targeted

research on interventions and strategies of problematic areas identified through outreach activities, such

as barriers to employment and enhancing employment outcomes.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Disability and Rehabilitation Research Projects .................................................................................... 5

Fellowships (Distinguished) ................................................................................................................ 13

Fellowships (Merit) ............................................................................................................................. 16

Advanced Rehabilitation Research Training Projects.......................................................................... 22

Capacity Building for Rehabilitation Research and Training

In the arena of capacity building, NIDRR has focused its efforts on the personal and

professional development of scientists, advocates, and people with disabilities, and is

expanding this approach to include development of the capacity of institutions and

organizations, especially those that address the needs of underserved populations. At

the individual level, NIDRR focuses on capacity building to ensure a source of

researchers to carry out the research agenda. In addition, NIDRR capacity building at

this level enhances the ability of researchers to generate useful new knowledge.

NIDRR historically has sought to increase the number of individuals from

underrepresented groups in this effort, particularly those with disabilities. At the

organizational or systems level, NIDRR capacity building supports the framework

for carrying out individual level research work. At the systems level, all NIDRR

programs may be said to involve capacity building, in that NIDRR funding is

intended to increase the capacity of the field to conduct high quality research

directed at its long-term goals and objectives.

NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

University of Illinois at Chicago National Research and Training

Center on Psychiatric Disability

University of Illinois at Chicago

Center on Mental Health Services Research and Policy

1601 West Taylor Street, 4th Floor, M/C 912

Chicago, IL 60612

jonikas@psych.uic.edu

www.psych.uic.edu/uicnrtc

Principal Investigator: Judith A. Cook, PhD 312/355-3921

Public Contact: Jessica A. Jonikas 312/355-1696 (V); 312/422-0706 (TTY); Fax: 312/355-4189

Project Number: H133B050003

Start Date: October 01, 2005

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $500,000; FY 06 $500,000; FY 07 $500,000; FY 08 $1,300,000

Other Funding: FY 05 $800,000 Centers for Mental Health Services (CMHS); FY 06 $800,000

CMHS; FY 07 $800,000 CMHS; FY 08 $800,000 CMHS

Abstract: The University of Illinois at Chicago National Research and Training Center on Psychiatric

Disability (UIC-NRTC) promotes access to effective consumer-centered and community-based practices for adults with serious mental illness. The Center is conducting five rigorous research projects to

enhance the state of evidence-based practice (EBP) in this field: A randomized controlled trial (RCT)

study of Wellness Recovery Action Planning (WRAP) to gather evidence regarding its effectiveness;

an RCT to evaluate the effectiveness of BRIDGES, a 10-week peer-led education course designed to

provide mental health consumers with basic education about the etiology and treatment of mental

illness, self-help skills, and recovery principles; an RCT of peer support services delivered by

Georgia’s Certified Peer Specialists at consumer-run Peer Support Centers in order to determine the

outcomes of service recipients; a self-directed care program in which adults with serious mental illnesses are given control of financial resources to self-direct their own recovery; and a project using

data from 12 clinical trials studies of consumer-operated service programs to create a national data

repository to promote research and develop scholarship in this area. The Center also conducts state of

the art training, dissemination, and technical assistance projects designed to enhance the leadership

skills of people with psychiatric disabilities, and evaluate a self-advocacy skills training program

delivered to clients of a large psychosocial rehabilitation agency. Additional projects evaluate selfadvocacy skills training programs and implement training programs to prepare consumer leaders in the

State of California to take part in systems change in their local communities. UIC-NRTC is embarking

on an academic curriculum transformation project starting at UIC in the medical, social, and behavioral

sciences to incorporate principles of recovery and EBP for people with psychiatric disabilities. The

UIC-NRTC is designing and administering a no-cost online certification program, providing comprehensive introduction of knowledge required by peer providers. Additionally, the UIC-NRTC is provid-
9-4 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

ing training and developing projects and tools to assist individuals in recovery to gain the skills necessary for community integration by enhancing the research capacity of three federally-funded consumerrun Technical Assistance Centers. Finally, the UIC-NRTC is offering an annual series of online workshops; web-based continuing education courses; and a state of science national conference (2008)

focusing on EBP, research implementation, consumer-centered systems, workforce development, and

other emerging trends.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-5

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Connecticut

Building Research Capacity Through Collaboration among American

Indian Tribes in Connecticut and Rhode Island

Mashantucket Pequot Tribal Nation

1 Matt’s Path

Mashantucket, CT 06339

fwilkins-turner@mptn-nsn.gov

tribalvr.org/research/

Principal Investigator: Felicia Wilkins-Turner, PhD

Public Contact: 860/396-2105; Fax: 860/396-2282

Project Number: H133A031706

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $294,057; FY 04 $336,824; FY 05 $349,984; FY 06 $329,797; FY 07

$347,274; FY 08 (No-cost extension through 12/31/2008)

Abstract: This project builds capacity among four American Indian tribes to improve the quality of

health and disability service information available for tribes in Connecticut and Rhode Island. Four

objectives achieve this goal: (1) to investigate access to, and acceptance rates for VR services, types of

services provided, and VR costs for American Indians with disabilities; (2) to ensure the optimal

collaboration of Connecticut and Rhode Island Indian tribes and others in disability and rehabilitation

research, (3) to maximize potential for recruitment of American Indian researchers; and (4) to investigate and evaluate the participation of American Indians in disability and rehabilitation research activities and direct service delivery, and determine to what extent participation leads to improved VR

outcomes. All staff was trained in the Participatory Action Research model, and culturally appropriate

research methodology utilizing the expertise of the American Indian Rehabilitation Research and

Training Center at Northern Arizona University. An experienced senior rehabilitation researcher is

used as mentor to the Research Coordinator, through development of two surveys for data collection.

Two graduate students analyze the data and serve as mentors for the Research Technicians (tribal

members) who are hired to collect the data within their own communities. Data results are shared with

each of the four participating tribes (Mashantucket Pequot, Eastern Pequot, Schaghticoke, and

Narragansett) and with the Connecticut Bureau of Rehabilitation Services through the Advisory

Council of the Mashantucket Pequot Vocational Rehabilitation Program.
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Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Center for Strategic Capacity Building on Minorities with Disabilities

Research

University of Illinois at Chicago

Department of Disability and Human Development (M/C 626)

1640 West Roosevelt Road

Chicago, IL 60608

www.disabilityempowerment.org/

Principal Investigator: Fabricio E. Balcazar, PhD 312/413-1646

Public Contact: 312/413-1806 (V); 312/413-0453 (TTY); Fax: 312/413-1804

Project Number: H133A040007

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $600,000; FY 05 $600,000; FY 06 $600,000; FY 07 $600,000; FY 08

$600,000

Abstract: The Center for Capacity Building on Minorities with Disabilities Research (CBMDR)

increases the capacity of community-based organizations (CBOs like Centers for Independent Living

and other agencies) and State Vocational Rehabilitation (VR) Agencies to document the impact of their

programs and develop culturally competent services. The CBMDR utilizes participatory research

methodologies to promote organizational change. The Center’s mission is to promote positive rehabilitation outcomes for minority individuals with disabilities at the national level. Center staff conducts

participatory research and demonstration projects in collaboration with interested agencies, engages in

active dissemination efforts, and provides state-of-the art training and technical assistance on cultural

competence to professionals and researchers in the field. Presently, there is a limited understanding of

the relationship between minority and disability status and how it affects an individual’s access to

quality rehabilitation, technical training, or independent living services that will result in competitive

employment and increased independence. In addition, CBOs are under increased pressure from

funders to use research methods to improve the quality of the services they provide. The Center utilizes

a participatory program evaluation model which actively involves consumers and agency staff in the

process of identifying service needs, selecting program goals, developing a logic model for success,

and implementing and evaluating change efforts to address critical needs and improve services. From

this perspective, participating agencies develop their capacity for effectively using consumer input and

program data to identify research questions and methods to improve services. In addition, research

projects examine various aspects of theory, methodology, measurement, and dissemination of information involving the study of underrepresented minorities with disabilities. Specifically, the project studies

issues related to racial identity and cultural mistrust in service provision to minority populations;

reviews the cultural and linguistic appropriateness of commonly used evaluation instruments in VR

certification; develops standards for culturally competent and linguistically appropriate research and

services; and identifies preferred strategies for the dissemination of research findings and other relevant
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-7

information to researchers and service providers. Center staff is also invested in promoting cultural

competence among researchers and practitioners from around the country. The research initiatives

include both quantitative and qualitative methodologies. Partnerships with universities, state VR

agencies, and CBOs maximize the outreach efforts and long-lasting effect of the center. The Center

develops specific techniques for ensuring that the information is disseminated in accessible formats to

all stakeholders.
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Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Hampshire

Building Knowledge and Capacity in the Rehabilitation and Recovery

of African-Americans Suffering from Severe Mental Illness: The

Dartmouth-Howard Collaboration.

Dartmouth College

Dartmouth Psychiatric Research Center

2 Whipple Place, Suite 202

Lebanon, NH 03766

Principal Investigator: Rob Whitley, PhD; William Lawson, MD, PhD

Public Contact: 603/448-0263 (Whitley); 202/865-6611 (Lawson); Fax: 603/448-3976

Project Number: H133A080063

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 08 $354,345

Abstract: The goal of the three projects conducted by this center is to understand the broad service

experience of African-Americans in psychiatric rehabilitation. The first project assesses the influence

on rehabilitation of living in independent housing units in small, relationship-centered buildings that

accommodate other people in recovery from mental illness. Seven of these small communities, each

with approximately 120 apartments, are the focus of this project. These are located in and around

Washington DC, and are studied longitudinally for three years using focus groups, interviews, and

ethnography to assess influence of living in such a building on recovery and community integration.

The second project examines the process of rehabilitation for African-Americans with a co-occurring

severe mental illness and substance use disorder. Participants are those whose primary substance use is

illegal drugs, and who are receiving either (i) dual diagnosis case management; (2) case management

plus group therapy; or (3) case management plus contingency management. Participants are followed

quantitatively and qualitatively over 18 months to assess how African Americans respond to these

treatments, as well as their subjective perception of treatment delivery and impact. The final project is a

study of the service experience of African-Americans in supported employment. Participants in six

different supported employment programs are assessed quantitatively, for drop-outs, engagement, and

missed appointments, and qualitatively through interviews and participant observation to understand

the dynamics of the patient-provider interaction. The aim of this research is to assess the cultural

competence of such programs, with ant: eye to building improved models tailored to African-Americans. This research involves a collaboration between Dartmouth Psychiatric Research Center and

Howard University College of Medicine, Department of Psychiatry.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-9

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Toward Equity: Innovative, Collaborative Research on Interpreter

Training, DBT, and Psychological Testing

University of Rochester

Department of Psychiatry

Deaf Wellness Center

300 Crittenden Boulevard

Rochester, NY 14642

robert_pollard@urmc.rochester.edu

www.urmc.rochester.edu/dwc/scholarship/Equity.htm

Principal Investigator: Robert Pollard, PhD

Public Contact: 585/275-3544; Fax: 585/273-1117

Project Number: H133A031105

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $299,900; FY 04 $299,848; FY 05 $299,985; FY 06 $299,727; FY 07

$299,935; FY 08 (No-cost extension through 12/1/2008)

Abstract: The research activities of this project focus on three thematic categories: mental health

interpreting, dialectical behavior therapy, and psychological testing. The interpreter training project

builds upon the Deaf Wellness Center’s (DWC) prior innovations in interpreter training and applies

them to four geographically dispersed urban settings. A team of experts in the mental health interpreting field employs the DWC’s demand-control schema approach and implements a five-month program

of training and supervision with a local interpreter pool. Dialectical behavior therapy (DBT) is a highly

structured treatment approach focusing on emotional regulation and behavioral self-control. The threepart DBT project adapts DBT materials and methods to maximize treatment access and efficacy with

three deaf consumer populations: those with language skills, those with limited language, and those

with comorbid psychiatric and substance abuse problems. The Signed Paired Associates Test and the

ASL Stories Test are tests of verbal learning and memory for sign language users. The extensive data

that exists at the DWC regarding the tests’ psychometric properties and clinical utility implications are

analyzed. This research has implications for the assessment of dementias, developmental disabilities,

learning disabilities, etc. A second testing project is the development of a psychosis symptom rating

scale. The goal is to produce a tool that clinicians can employ to reliably and validly identify the nature

and severity of psychotic symptomatology in deaf individuals. Finally, the project includes a psychological testing casebook, written based on reviews of hundreds of DWC psychological testing case

files. Most of the studies are multi-site, collaborative ventures.
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Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

South Carolina

Center on Health Outcomes Research and Capacity Building for

Underserved Populations with SCI and TBI

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

77 President Street, Suite 117

PO Box 250700

Charleston, SC 29425

cokerj@musc.edu

www.musc.edu/chp/sciorg/

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-7051; Fax: 843/792-5649

Project Number: H133A080064

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 08 $353,133

Abstract: This project builds the capacity of institutions that address the needs of underserved populations by: (a) conducting two innovative studies to generate new knowledge on the health of three

underserved racial-ethnic groups with traumatic neurologic injuries; (b) providing capacity building

through collaboration with South Carolina State University, a historic Black university, specialized

instruction of undergraduate and graduate students, and widespread training to institutions and organizations that represent underserved populations; and (c) providing technical assistance to a wide array of

target audiences to enhance the capacity to meet the needs of underserved populations. In Study 1,

researchers interview 500 African-Americans from population-based surveillance systems with SCI or

TBI and compare their health behaviors, access to services, and the prevalence of chronic diseases

with African-Americans in the general population (based on CDC surveillance). Researchers then

identify the extent to which disparities observed in the general population are magnified after injury.

Study 2 involves interviews with 836 participants with SCI, 575 of whom come from underserved

populations (African-Americans, Hispanics, and American Indians) in order to identify psychological,

environmental, and behavioral predictors of secondary health conditions. Mediational models are tested

to identify the risk and protective factors most strongly associated with disparities in health outcomes

(e.g., pain, depression, pressure ulcers) and the extent to which disparities disappear when accounting

for these factors. Researchers also determine whether the predictive model is invariant across raceethnicity (i.e., whether the significant predictors are the same across different racial-ethnic groups) and,

if not, which predictors are most important for each. Capacity building efforts include workshops,

mentorship of undergraduate and graduate students, and technical assistance.
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Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Minority Scholar/Champion Research Training Project

Texas Southern University

3100 Cleburne Avenue

Houston, TX 77004

www.tsu.edu/academics/continue/research/index.asp

Principal Investigator: Irvine E. Epps, EdD 713/313-7224

Public Contact: Marie A. Henry 713/313-7225; Fax: 713/313-7579

Project Number: H133A031704

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $350,000; FY 04 $349,655; FY 05 $349,889; FY 06 $348,986; FY 07

$349,222; FY 08 (No-cost extension through 11/30/2009)

Abstract: The Minority Scholars/Champions Research Training Project develops, implements, and

evaluates the effectiveness of a train-the-trainer “Scholar/Champion” model to facilitate increased and

improved vocational rehabilitation (VR)/disability research among the targeted Historically Black

Colleges and Universities (HBCUs). More specifically, the project develops an innovative research

infrastructure of institutional “cores” that partner an HBCU, Texas Southern University (TSU), with a

majority research institution, Baylor College of Medicine (BCM). Together, these partner institutions

create a collaborative research infrastructure that increases research capacity and helps build an institutional research infrastructure at five additional HBCUs in Texas. These “cores” are: (1) the Administrative, Planning, and Evaluation Core directs the Center, selects Center participants, and supervises

evaluation of all project activities, budgets, and reports; (2) the Training Core uses innovative methods

of onsite and off-site training to recruit, support, and mentor minority investigators in the areas of

research design, development, and implementation, including analysis of racial and cultural factors

related to VR/disability research; (3) the Community Collaboration and Dissemination Core partners

with communities and VR/disability agencies to engage individuals with disabilities in research and

training, using a model of participatory action-oriented research, and disseminates culturally-sensitive

information related to VR/disability research to community groups, agencies, and VR/disability researchers; and (4) the Research Core works with the HBCU Scholar/Champions to conduct innovative

and rigorous pilot research projects as well as write fully developed research proposals that address

racial disparities in VR/disability research.
9-12 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Virginia

Empowerment: Building Research Infrastructure Capacity

Virginia Commonwealth University

Department of Rehabilitation Counseling

730 East Broad Street, Room 3070

PO Box 980330

Richmond, VA 23298

anlewis@vcu.edu

Principal Investigator: Allen Lewis, PhD

Public Contact: 804/827-0914; Fax: 804/828-1321

Project Number: H133A080060

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 08 $356,550

Abstract: This project identifies and evaluates current practice and methods in the conduct of minority

disability research, offers research findings, and improves the capacity of minority institutions and

persons with disabilities to effectively conduct and disseminate such research thereby advancing the

state of the art and capacity in this research area. The project conducts three primary studies: (1) a

national survey that examines the experiences of Americans with disabilities from underrepresented

racial and ethnic minority groups to illuminate the current capacity of the public rehabilitation and

disability system, and what research methods, dissemination practices, and strategies are needed to

advance culturally competent research in the field; (2) a longitudinal study of post-injury unemployment for minority persons with traumatic brain and spinal cord injuries; and (3) prevalence and trends

in employment discrimination due to disability for different ethnic groups. In addition to these three

studies, the project has seven objectives: (1) establish meaningful collaborations and partnerships with

historically black universities; (2) convene a major Think Tank Summit in Year 1 that becomes an

ongoing Minority Disability Research Consortium; (3) create and implement an ongoing interactive

web portal; (4) mentor interested minority students and faculty members; (5) infuse minority disability

research best practices into research courses; (6) teach grant writing and publishing skills; and (7)

conduct a State-of-the-Science Conference. The proceedings from such a conference and the results

from the three studies lead to a major project outcome of a Handbook on Minority Disability Research.

Other project outcomes include but are not limited to published papers from the three studies; a national network of individuals with disabilities and minorities from which the efficacy of research and

dissemination practices can be evaluated in an ongoing manner; a web database of exemplary research

studies, and trained minority students and university faculty who can implement minority disability

research best practices identified by this effort and produce more research, including funded research

via NIDRR grants, in the future.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-13

Fellowships (Distinguished) Fellowships (Distinguished)

Illinois

Multi-Joint/DOFs Diagnosis and Treatment of Upper Limb in Patients

Post Stroke Using an Exoskeleton Robot

Hyung Soon Park, PhD

345 E. Superior Street, Suite 1406

Chicago, IL 60611

h-park4@northwestern.edu

Principal Investigator: Hyung Soon Park, PhD

Public Contact: 312/238-1425; Fax: 312/238-2208

Project Number: H133F080021

Start Date: September 01, 2008

Length: 12 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $75,000

Abstract: This project evaluates the effectiveness of upper limb stroke rehabilitation using an exoskeleton robot to provide accurate and quantitative multi-joint/degree of freedom (DOF) diagnosis on

pathological changes and treatment. The exoskeleton robot enables effective stroke rehabilitation using

unique diagnostic capabilities for individual patients to: (1) determine which joints and which DOFs

have significant changes in their neuro-mechanical properties, which joints lose independent control,

what the abnormal couplings are, and whether the problem is due to changes in passive muscle properties or active control capabilities; (2) based on the diagnosis, forcefully stretch the hypertonic/deformed

joints of the post-stroke patient under multi-joint intelligent control, thereby loosening problematic or

stiff joints and reducing abnormal couplings between joints/DOFs; and (3) encouraging patients to

practice voluntary functional movement to regain/improve their motor control capability.
9-14 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

Fellowships (Distinguished) Fellowships (Distinguished)

Maryland

Demographic Soup: Disentangling the Conceptual, Political, and

Methodological Dimensions of Disability Statistics

Barbara Altman

14608 Melinda Lane

Rockville, MD 20853

paul.altman@verizon.net

Principal Investigator: Barbara Altman

Public Contact: 301/460-5963

Project Number: H133F060011

Start Date: December 01, 2006

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 06 $75,000; FY 07 (No-cost extension through 11/30/2008); FY 08 (No-cost

extension through 11/30/2009)

Abstract: There are variances in disability research including how information is obtained and converted into useable data. This project brings together, in one document, the accumulation of knowledge

on measuring disability in survey and census contexts. Through the incorporation of several methodologies including historical review, analysis of political processes and decision-making, and complete

examination of the source, placement, and evaluation of disability measures currently in use, the book

manuscript contributes to the improvement of disability statistics, serving as a reference document to

understanding the data that exists. The book manuscript is divided into five sections: (1) examination

of the political and historical context, which includes chapters on the history of disability measurement;

(2) examination of the conceptualization and definition of disability, including chapters on the political

definitions for programmatic purposes and theoretical definitions; (3) examination of the science,

purpose, and relationship between the components of measurement, and the specific problems with

measurement in relation to special populations (i.e. children); (4) reviews of sample analysis and the

use of data including sources of data, research questions, and special focus on measures used in special

areas of research (i.e. aging and employment); and (5) exploration of international measurement of

disability and the role of the US in its development. Conclusions include recommendations for improving and standardizing the measurement and data collection process.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-15

Fellowships (Distinguished) Fellowships (Distinguished)

Massachusetts

A Mixed Methods Study of Parenting, Children, and Recovery in

Mothers with Severe Psychiatric Disabilities

Joanne Nicholson, PhD

CMHSR/Department of Psychiatry

University of Massachusetts Medical School

55 Lake Avenue North

Worcester, MA 01655

joanne.nicholson@umassmed.edu

Principal Investigator: Joanne Nicholson, PhD

Public Contact: 508/856-8712; Fax: 508/856-8700

Project Number: H133F080009

Start Date: July 01, 2008

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 08 $75,000

Abstract: This project explores the relationship between parenting, children, and recovery for mothers

with severe psychiatric disabilities. Target populations include: (1) parents with severe psychiatric

disabilities, (2) their family members, (3) providers, and (4) policy makers. A triangulation, mixed

methods design employs qualitative and quantitative data obtained from 70 mothers with at least 1

minor child in the home at study enrollment, 6-, and 12-month follow-ups. Qualitative data is obtained

concurrently, from approximately 36 of their children between the ages of 8 and 17 at the 3 data

collection points. The qualitative data from mothers and children is then cross-tabulated by and integrated with quantitative data from mothers, exploring the person-centered elements of recovery

through: (1) the mothers’ parenting experiences; (2) elaborating on the relationship between children’s

well-being and contribution to family life; and (3) their mothers’ recovery over the 12-month period.

The project develops a model of the relationships between parenting, children, and recovery in adults

with psychiatric disabilities; and presents the opportunities and targets for interventions and developments in mental health and child welfare policy and practice.
9-16 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

Fellowships (Merit) Fellowships (Merit)

Illinois

Virtual Reality-Based Assessment Tool for Spatial Neglect Following

Stroke

Assaf Y. Dvorkin, PhD

345 East Superior Street, Suite 1406

Chicago, IL 60611

a-dvorkin@northwestern.edu

Principal Investigator: Assaf Y. Dvorkin, PhD

Public Contact: 312/238-5828; Fax: 312/238-2208

Project Number: H133F080010

Start Date: July 01, 2008

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 08 $65,000

Abstract: This project investigates the possibilities of robotics and virtual reality technology in spatial

neglect following stroke. A haptic/graphic virtual reality system (VRROOM) is developed and used in

assessing and quantifying perceptual performance and overall movement quality. The data provides

therapists and physicians with a more precise quantitative description of a patient’s sensory and motor

deficits in different spatial dimensions and provides a rational basis for improving current neuropsychological assessment measures.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-17

Fellowships (Merit) Fellowships (Merit)

Illinois

Development of a Neural-Machine Interface for Lower-Limb Prosthesis

Control

He Huang, PhD

University of Rhode Island

Department of Electrical, Computer & Biomedical Engineering

Four East Alumni Avenue

Room A-116

Kelley Annex

Kingston, RI 02881

Helen-Huang@northwestern.edu

www.ric.org/research/centers/necal/staff/Huang.aspx

Principal Investigator: He Huang, PhD 312/238-2084

Public Contact: Fax: 312/238-2081

Project Number: H133F080006

Start Date: September 01, 2008

Length: 12 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $65,000

Abstract: The project improves the functioning of artificial legs by introducing voluntary prosthesis

control at the neurological level through neural-machine interfaces (NMI) such as electromyography

pattern recognition and targeted muscle reinnervation with arm and leg prosthetics. The NMI designs

improve the function of arm prostheses and provide possibilities for improvement with leg prostheses

based on an information-fusion and phase dependent pattern recognition model. This model provides

reliable and timely recognition of intended user movements for voluntary prosthetic leg control, and

permits people with lower-limb amputations to perform various activities easily and efficiently.
9-18 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

Fellowships (Merit) Fellowships (Merit)

Massachusetts

A Survey of Postsecondary Disability Services Use by Students with

Psychiatric Disabilities

Anne P. Sullivan-Soydan, ScD

63 Washington Drive

Acton, MA 01720

apsoydan@bu.edu

Principal Investigator: Anne P. Sullivan-Soydan, ScD

Public Contact: 978/266-9567

Project Number: H133F080030

Start Date: August 01, 2008

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 08 $65,000

Abstract: This project investigates the services provided by postsecondary campus-based offices of

disability support services (DSS) across the United States to students with serious psychiatric disabilities. There are three project objectives: (1) document use of services provided by postsecondary

campus-based DSS offices to students with serious psychiatric disabilities across the ten RSA federal

regions; (2) explore faculty perspectives on the needs and impact of DSS students with serious psychiatric disabilities; and (3) disseminate study findings to the fields of mental health, postsecondary

education, and rehabilitation counseling, using print, web-based, and presentation formats. A webbased survey is used to gathered information about the types of DSS offered, provider experience and

credentials, the number of students with psychiatric disabilities served, frequency of service use, and

student service and enrollment outcomes. Telephone interviews are conducted with select faculty

drawn from the participating postsecondary education institutions.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-19

Fellowships (Merit) Fellowships (Merit)

Michigan

Psychometric Evaluation of the Family Quality of Life Survey for

Minority Families

Preethy Samuel, PhD

4809 Woodward Avenue

268 Leonard Simons Building

Detroit, MI 48202

preethy@wayne.edu

Principal Investigator: Preethy Samuel, PhD

Public Contact: 313/577-8562; Fax: 313/577-3770

Project Number: H133F080024

Start Date: September 01, 2008

Length: 12 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $65,000

Abstract: The long-term goal of the project is to evaluate the potential of empowerment family support projects in improving the family quality of life (FQOL) of underserved families using a culturallysensitive and rigorous outcome measure. Hence the project evaluates the psychometrics of the Family

Quality of Life Survey (FQOLS) for measuring the FQOL of low-income, inner city, minority families

raising children with developmental disabilities. There are four project goals: (1) to establish the

construct validity and reliability of the FQOLS by analyzing the factorial structure of each of the nine

familial domains; (2) to establish the test-retest reliability of the FQOLS; (3) to establish the convergent

validity of the FQOLS with the Beach Center FQOL Scale and the Family Community Integration

Survey; and (4) to analyze the factors influencing the FQOL of low-income minority families raising

children with disabilities.
9-20 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

Fellowships (Merit) Fellowships (Merit)

Pennsylvania

Physical and Social Environmental Factors that Influence Health and

Participation Outcomes for Chronically-Ill Adults

Janet A. Prvu-Bettger, ScD

University of Pennsylvania

School of Nursing

New Courtland Center for Transitions and Health

3625 Chestnut Street, #334

Ralston House

Philadelphia, PA 19104

janetpr@nursing.upenn.edu

Principal Investigator: Janet A. Prvu-Bettger, ScD

Public Contact: 617/901-0277

Project Number: H133F080014

Start Date: July 01, 2008

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 08 $65,000

Abstract: This project explores the factors of health and participation outcomes among older adults

with chronic conditions who are living in the community with or without disabilities. Considering

individual factors such as informal, formal, and societal supports, there are three research objectives:

(1) determining the direct and indirect effect of social capital in a community on health and participation outcomes; (2) identifying the relationship between health and participation outcomes with measures of the neighborhood; and (3) assessing the relationship of the subjective measure of perceived

social capital and the objective measures of the neighborhood for their collective influence on the

health and community participation of older adults with and without disabilities. The project develops

research aimed to improve community practice, policy, and the health system to assist adults with

achieving independence, allowing for greater participation and social involvement.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-21

Fellowships (Merit) Fellowships (Merit)

Pennsylvania

Skin Blood Flow Oscillations and Pressure Ulcer Risk in Older Adults

with Disabilities

Yih-Kuen Jan

2310 Jane Street, Suite 1300

Pittsburgh, PA 15203

yij2@pitt.edu

Principal Investigator: Yih-Kuen Jan

Public Contact: 412/586-6912; Fax: 412/586-6910

Project Number: H133F060025

Start Date: December 01, 2006

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 06 $65,000; FY 07 (No-cost extension through 11/30/2008)

Abstract: Pressure ulcers significantly affect the quality of life and overall healthcare costs for older

people with disabilities. Current clinical pressure ulcer prevention in this population is inadequate due

to prevention interventions determined to be at risk by the Braden Scale tool. This project develops

alternative methods and tools for the identification of older people at the highest risk for pressure

ulcers. Specific aims include: (1) comparing microvascular vasodilatory function and blood flow

oscillations between older people at high and low risk of pressure ulcers; and (2) studying the agerelated microvascular dysfunction in older people, correlating to risk levels identified by the Braden

Scale, and to the physical characteristics of older people. Four hypothesizes are tested including: (1)

maximal skin blood flow in response: to heat is lower in older people at risk for pressure ulcers as

compared with older people at low risk; (2) the power within the 0.008-0.02 Hz frequency band (i.e.

endothelial nitric oxide mediation control) embedded in skin blood flow oscillations is lower in older

people at high risk as compared with older people at low risk; (3) the power within the 0.008-0.02 Hz

frequency band is lower in older people ages 75-85 years as compared with older people ages 65-75

years; and (4) physical characteristics missed in the Braden Scale of older people show a correlation

with the decreased total skin blood flow and/or decreased power within nitric oxide mediation vasodilation.
9-22 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Rehabilitation Science for Basic Scientists and Engineers: An Advanced

Training Program

Northwestern University

Rehabilitation Institute of Chicago

345 East Superior, Room 1406

Chicago, IL 60611-4496

r-millard@northwestern.edu

Principal Investigator: W. Zev Rymer, MD, PhD

Public Contact: Robin Millard 312/238-6051; Fax: 312/238-2208

Project Number: H133P040007

Start Date: May 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $149,625; FY 05 $149,922; FY 06 $149,570; FY 07 $149,910; FY 08

$149,558

Abstract: The goal of this program is to increase the number of PhD engineers and basic scientists

trained to perform research aimed at solving problems of people with disabilities. To meet this objective, the project trains postdoctoral scientists in three areas of special expertise: musculoskeletal biomechanics; neurorehabilitation; and prosthetics, orthotics, and biomaterials. Targeted technical training is

coordinated with intensive clinical instruction and experience. Postdoctoral trainees, including scientists and engineers from minority or disability groups, are recruited by regional and national advertising

and via the Internet. Many training faculty are based within the Rehabilitation Institute of Chicago,

providing access to active clinical rehabilitation programs, and interaction both with clinical faculty and

people with disabilities.el:
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-23

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Advanced Training in Translational and Transformational Research to

Improve Vocational Outcomes for Persons with Disabilities

University of Illinois at Chicago

Department of Occupational Therapy

1919 West Taylor Street

MC 811

Chicago, IL 60612

kielhfnr@uic.edu

Principal Investigator: Gary Kielhofner, PhD

Public Contact: 312/996-4973; Fax: 312/413-0256

Project Number: H133P060003

Start Date: September 01, 2006

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 06 $150,000; FY 07 $150,000; FY 08 $150,000

Abstract: This project provides an intensive, interdisciplinary postdoctoral training program that

actively engages scholars in research designed to improve employment for persons with disabilities.

This advanced training program focuses on sub-populations of people with disabilities who are likely

to encounter the greatest number of barriers to accessing employment and relevant vocational services.

Moreover, the training program emphasizes preparing scholars to conduct research that has real world

impact (i.e., guiding and changing services, programs, organizations, and policies that influence

employment of persons with disabilities). As such it emphasizes: (1) translational scholarship that uses

empirical knowledge to develop, refine, and test optimal services and environmental strategies to

support employment; and (2) transformational scholarship employing participatory methodologies that

involve stakeholders in the research process and directly improve services, programs, organizations,

and policies. The training is strongly informed by concepts from disability studies that highlight the

importance of relevant services that address the perspectives of persons with disabilities and that

address environmental barriers to employment. The postdoctoral training program recruits and enrolls

seven highly qualified postdoctoral trainees from a variety of disciplines. Particular efforts are made to

recruit postdoctoral trainees with disabilities as well as those from diverse backgrounds. Each trainee

completes an intensive two-year advanced training program designed to assure acquisition of key skills

critical to successful research careers. The training program includes: (1) didactic preparation, (2) close

mentoring by highly qualified researchers, (3) immersion in ongoing research, and (4) field placement

in carefully selected programs or organizations where employment of people with disabilities is being

addressed. Trainees undergo a structured and closely supervised training process with a range of

opportunities for didactic and experiential training and with common expected milestones. At the same

time, each trainee’s program is individually designed to assure that the trainee has access to the most

rigorous and relevant concepts and research methodologies for his/her chosen focus for studying

vocational needs, services, and outcomes. The project monitors and assures high quality training, and

supports trainees to develop capacity to enter productive research careers that directly improve services, programs, and policies and that remove barriers to the employment of people with disabilities.
9-24 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training Project in Rehabilitation

Services Research

Northwestern University

Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

www.ric.org/research/fellowships.php

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-4572

Project Number: H133P080006

Start Date: July 01, 2008

Length: 60 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 08 $150,000

Abstract: This project provides training to seven post-doctoral fellows as part of the Institute-led

health services training program at Northwestern University. This well-functioning interdisciplinary

program involves a substantial number of health services research faculty who work closely with one

another to direct a rigorous and relevant interdisciplinary curriculum for training health services researchers. The program includes carefully matched mentors, didactic course work, original research,

grant writing, and scientific publishing over a two-year program. Seven fellows develop new skills to

enhance their previous training in order to pursue a research career in rehabilitation-related health

services research.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-25

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Massachusetts

Post-Doctoral Fellowship in Rehabilitation Outcomes and Effective

Research

Boston University Medical Campus

School of Public Health

Health and Disability Research Institute

580 Harrison Avenue

Boston, MA 02118

rmonarch@bu.edu

www.bu.edu/cre/training

Principal Investigator: Alan M. Jette, PhD 617/638-1985

Public Contact: Roseanne Monarch 617/638-1992; Fax: 617/638-1992

Project Number: H133P050001

Start Date: September 01, 2005

Length: 60 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 05 $150,000; FY 06 $150,000; FY 07 $150,000; FY 08 $150,000

Abstract: The BU Post-Doctoral Fellowship Program in Outcomes Research provides an interdisciplinary training and mentorship experience. The target group is doctorally-prepared rehabilitation professionals. The major function is to help post-doctoral fellows develop and refine the skills they will need

to conduct high quality, independent, funded research on the outcomes and effectiveness of rehabilitation care. Innovative strategies include: Obtaining advanced knowledge in the four content areas of

responsible conduct of research, advanced research design, advanced statistical methods, and contemporary measurement methodology; conceptualizing and assuming a major role in writing scientific

articles; obtaining experience in developing and presenting scientific presentations; assuming a major

role in writing research grant applications; and developing the ability to contribute in a meaningful and

constructive fashion in planning and implementing scientific abstracts, grant applications, and scientific

manuscripts as part of a research team. The main outcome of the program is to contribute to the creation of a cadre of highly skilled researchers equipped to conduct research to improve rehabilitation

outcomes and evaluate existing and new rehabilitation interventions.
9-26 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Massachusetts

Advanced Research Training Program in Psychiatric Rehabilitation

Boston University

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue

Boston, MA 02215-1303

zlatka@bu.edu

www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD; E. Sally Rogers, ScD;

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133P070001

Start Date: September 01, 2007

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 07 $149,986; FY 08 $149,994

Abstract: This project conducts two consecutive cycles of 2.25 year postdoctoral fellowship in psychiatric rehabilitation research, offered to six fellows over the course of the project. The recruitment

efforts target consumers, with the expectation of selecting one or more consumers. In order to optimize

the training experience, three fellows are in residence during each cycle. While the fellowship is

designed to provide a broad-based intensive training in psychiatric rehabilitation research, the six

fellows develop a particular expertise in conducting recovery oriented research given the current

research profile of the Center for Psychiatric Rehabilitation at Boston University. Through a variety of

training modalities fellows acquire competencies in the following areas: psychiatric rehabilitation and

recovery framework; consumer advocacy and self-help; research design/methodology; statistics;

computer literacy; conduct of applied rehabilitation research; and grant and professional writing. The

goals of this project are to: recruit six individuals with doctoral-level clinical training who are committed to pursuing a career in psychiatric rehabilitation research; provide fellows with intensive state-ofthe-art didactic experience as well as exposure to collegial collaboration relevant to psychiatric rehabilitation research; provide fellows with a research practicum consisting of a mentored participation in an

ongoing project in psychiatric rehabilitation or recovery, development and implementation of an

original pilot study and preparation of a grant submission and publications relevant to each fellow’s

area of research interest; and evaluate the overall research training program, including recruitment,

didactic training, and research practicum.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-27

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Michigan

The UMHS/MSU/AACIL Rehabilitation Research Training Program

University of Michigan

Department of Physical Medicine and Rehabilitation

Rehabilitation Psychology

325 East Eisenhower, Suite 100

Ann Arbor, MI 48108

dgtate@umich.edu

www.med.umich.edu/pmr/arrtp

Principal Investigator: Denise G. Tate, PhD, ABPP

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133P030004

Start Date: September 01, 2003

Length: 60 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06 $150,000; FY 07

$150,000; FY 08 (No-cost extension through 08/31/2009)

Abstract: The University of Michigan Health System (UMHS), Department of Physical Medicine and

Rehabilitation, and the Ann Arbor Center for Independent Living (AACIL) with consulting faculty

from Michigan State University (MSU) and Wayne State University (WSU) have developed a training

program to train six PhD and ten MD fellows. Training opportunities include the existing research

programs funded at UMHS, the academic doctoral level rehabilitation counseling program at MSU, the

multidisciplinary rehabilitation program at WSU, and opportunities for research training at a community-based agency, the AACIL. Emphasizing the consumer-scientist-practitioner model, this

multidisciplinary research training program utilizes faculty and resources from 3 universities and from

the AACIL to train 16 new fellows. Fellows and resident trainees may select from a curriculum that

focuses on three content areas: (1) health rehabilitation outcomes; (2) independent living and community re-integration; and (3) social/environmental aspects of rehabilitation, including assistive technology.
9-28 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Missouri

Health Activity Rehabilitation Research Training Center (HARRTC)

University of Missouri/Columbia

Department of Physical Medicine and Rehabilitation

DC046.00

One Hospital Drive

Columbia, MO 65212

holtmeyerk@health.missouri.edu

harrtc.missouri.edu

Principal Investigator: Jerry C. Parker, PhD 573/884-0042

Public Contact: Kim Holtmeyer, Grant Administrator 573/884-1499; Fax: 573/884-4540; 573/884-

3020

Project Number: H133P050005

Start Date: September 01, 2005

Length: 60 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 05 $150,000; FY 06 $150,000; FY 07 $150,000; FY 08 $150,000

Abstract: The specific aim of the Health Activity Rehabilitation Research Training Center is to

prepare postdoctoral trainees with comprehensive, collaborative research skills requisite for a career in

independent rehabilitation research. A key outcome of this project is a sustainable, replicable training

model that enhances the flow of basic research findings to clinical settings, thereby enhancing rehabilitation strategies for individuals with disabilities. One-third of project fellows are selected from

underrepresented populations, including individuals with disabilities. Postdoctoral fellows study a

rigorous, two-year core curriculum in advanced scientific methodology, and engage in

multidisciplinary training experiences through: (1) collaborating agencies; (2) campus and community

settings; (3) research mentors (scientists) from Biomedical Sciences, Physiology and Pharmacology,

Nutrition Sciences, and Physical Therapy; and (4) rehabilitation clinician-mentors. The training program incorporates didactic, classroom, and hands-on laboratory training. By the conclusion of training,

postdoctoral fellows will have completed a supervised independent research project, prepared scientific

manuscripts, presented their research findings at national meetings, and submitted their capstone

project, an extramural grant application. This program offers fellows a dual model of mentorship: a

clinical mentor and a scientist research mentor. In addition, a graduate-thesis research model provides

fellows with first-hand research experience.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-29

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New Jersey

Advanced Psychiatric Rehabilitation Research on Employment and

Community Integration

University of Medicine and Dentistry of New Jersey

School of Health Related Profession

1776 Raritan Road

Scotch Plains, NJ 07076-2997

kgill@umdnj.edu

Principal Investigator: Kenneth J. Gill, PhD

Public Contact: 908/889-2438

Project Number: H133P050006

Start Date: September 01, 2005

Length: 60 months

NIDRR Officer: Edna Johnson, PhD

NIDRR Funding: FY 05 $149,999; FY 06 $149,999; FY 07 $150,000; FY 08 $150,000

Abstract: This project offers a postdoctoral research training program in the areas of community

integration, natural supports including “circles of support”, and rehabilitation readiness. Fellows

participate in a variety of mentoring and didactic experiences provided by research mentors from

UMDNJ and the University of Pennsylvania. Fellows have the opportunity to continue to develop

their own long-term research program while participating in the research activities of their mentor.

They regularly present at departmental colloquia, and national and state conferences. Fellows develop

grant proposals and prepare articles for publication in peer-reviewed journals. Both didactic and field

training in psychiatric rehabilitation research focus on scientific methodology including experimental,

quasi-experimental, and correlational and survey methods. Fellows participate in research in one of the

following research areas: (1) comparing alternative job retention strategies including circle of support

approach to a diversity of strategies; (2) the reliability and validity of rehabilitation readiness measures

and indicators including their relationship to employment outcomes; and (3) a variety of community

integration projects on the factors that influence community integration, public policy affecting the

community, interventions designed to promote community integration through case management, and

Internet-based self-help or supported education provided by peers. Partner institutions include the

University of Pennsylvania RRTC on Community Integration, UPenn School of Social Work, Indiana

University-Purdue University School of Psychology, Boston University Sargent College of Health &

Rehabilitation and the Veterans Affairs of New Jersey.
9-30 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New Jersey

Advanced Rehabilitation Research Training Center on Neuromusculoskeletal Rehabilitation

University of Medicine and Dentistry of New Jersey/New Jersey Medical School (UMDNJ/NJMS)

and

Kessler Medical Rehabilitation Research and Education Center (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

Principal Investigator: Sue Ann Sisto, PT, PhD

Public Contact: 973/243-6888; Fax: 973/243-6984

Project Number: H133P070007

Start Date: September 01, 2007

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 07 $149,559; FY 08 $149,847

Abstract: This post-doctoral research interdisciplinary training program on neuro-musculoskeletal

rehabilitation provides postdoctoral research opportunities to qualified individuals interested in research, and academic careers related to rehabilitation research. Over the course of the program, nine

postdoctoral fellows plan, conduct, and disseminate research, and may choose to conduct research in

neuro-musculoskeletal rehabilitation. Each ARRT fellow conducts rehabilitation research for a twoyear term. Anticipated measurable outcomes include published research studies, presentations at

national scientific meetings, submission of grant proposals, completion of research related courses,

training in techniques of dissemination, and the development of interdisciplinary research networks. In

addition to participation in research activities, each fellow completes a series of core courses and

directed study on interdisciplinary research, HIPAA, and the ethics for the recruitment of human

subjects in rehabilitation research. The activities of each postdoctoral fellow are directed and monitored

by a fellowship mentor with a demonstrated ability to implement, conduct, and disseminate the results

of research investigations contributing to the advancement of rehabilitation science. Core faculty

involved in the program represent departments/divisions of physical therapy, occupational therapy,

rehabilitation science, biomedical engineering, biomechanics, computer science, and mechanicalaerospace engineering. The goal of this project is to provide young investigators a stimulating environment, with an atmosphere of enthusiasm tempered by rigorous methodology that instills the desire to

improve the everyday lives of persons with disabilities.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-31

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New York

Advanced Rehabilitation Research Training Program

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

One Gustave L. Levy Place

Box 1240

New York, NY 10029

mary.hibbard@mssm.edu

www.mssm.edu/tbinet

Principal Investigator: Mary R. Hibbard, PhD 212/659-9374

Public Contact: 212/659-9374; Fax: 212/348-5901

Project Number: H133P050004

Start Date: September 01, 2005

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 05 $149,999; FY 06 $149,999; FY 07 $149,999; FY 08 $149,999

Abstract: This Advanced Rehabilitation Research Training Program increases research capacity by

training ten doctoral level professionals interested in pursuing research careers in rehabilitation of

individuals with traumatic brain injury (TBI) and spinal cord injury (SCI). In addition to expanding

their research expertise, fellows will increase their knowledge of participatory action research and

quantitative and qualitative research methods, and actively participate with an interdisciplinary team of

rehabilitation researchers. Fellows are taught approaches to performance management and methods of

evidenced-based practice review. Research capacity building of the fellows is facilitated via mentoring

on independent research projects and clinical supervision in interdisciplinary research experiences. To

ensure sensitivity to issues germane to individuals with TBI and SCI, fellows spend a portion of their

time providing clinical interventions or participating in structured community experiences. Performance

measures are utilized to monitor progress of the program and its fellows, with oversight provided by an

executive committee and an advisory board. By completion of training, fellows are expected to have

completed a minimum of one independent research project, presented the results of their research to

professional and consumer groups, submitted their findings for publication in peer-reviewed journals,

and participated in writing extramural grant proposals.
9-32 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New York

Advanced Rehabilitation Research and Disability Policy Training

Center

Syracuse University

School of Education

259 Huntington Hall

Syracuse, NY 13244

jlbellin@syr.edu

Principal Investigator: James L. Bellini, PhD

Public Contact: 315/443-9655

Project Number: H133P070004

Start Date: August 01, 2007

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 07 $149,986; FY 08 $149,994

Abstract: This project provides advanced training in rehabilitation research outcomes and disability

policy research for seven trainees over the life of the project. The project offers an individualized

training program to accommodate the needs of various postdoctoral researchers and others with advanced degrees who hold leadership positions in rehabilitation research and related policy areas.

Participants can pursue one of two traineeships: full-time, two-year (four trainees) and full-time, oneyear (three trainees). The project offers a set of core training experiences, including: advanced rehabilitation research seminar; individual mentoring in research and grant proposal-writing; a practicum in

research ethics and human subjects protections; and a practicum in the peer-review process and editorial decision-making. Trainees also select advanced training in one of two strands: rehabilitation outcomes research and disability policy research. Each strand includes 9-15 credits of coursework in

advanced rehabilitation research or disability policy research (with a Certificate of Advanced Study in

Disability Studies) and an internship at a rehabilitation or disability policy research project. Trainee

capstone experiences include the preparation and submission of peer-reviewed articles, conference

papers, or grant proposals as well as the preparation of research training packages for dissemination

through the project.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-33

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Texas

Interdisciplinary Rehabilitation Research Training Program

University of Texas Medical Branch

301 University Boulevard

Galveston, TX 77555-1137

kottenba@utmb.edu

www.sahs.utmb.edu/rehab

Principal Investigator: Kenneth J. Ottenbacher, PhD

Public Contact: Beth Cammarn 409/747-1637; Fax: 409/747-1638

Project Number: H133P040003

Start Date: July 01, 2004

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $145,686; FY 05 $145,686; FY 06 $145,686; FY 07 $145,686; FY 08

$148,023

Abstract: This ARRT program provides postdoctoral research opportunities to qualified individuals

interested in clinical and academic careers related to rehabilitation research. Three postdoctoral fellows

must plan, conduct, and disseminate research in one of the following areas: cognitive/neurological

rehabilitation, applied physiology/biomechanics of rehabilitation, or geriatric rehabilitation. Each

rehabilitation research fellow selects one of the three research areas and conducts clinical investigations

for up to three years. Outcomes include published research studies, presentations at national scientific

meetings, submission of grant proposals, completion of research related courses, training in techniques

of dissemination, and the development of interdisciplinary research networks. In addition to participating in clinical research activities, each fellow completes a series of core courses and directed study

related to interdisciplinary research and the ethics associated with scientific inquiry and the use of

human subjects in rehabilitation research. All fellows participate in a practicum experience involving

persons with disabilities and their families/caregivers organized through the Transitional Learning

Center. The activities of each postdoctoral fellow are directed and monitored by a fellowship supervisor with a demonstrated ability to implement, conduct, and disseminate the results of research investigations contributing to the advancement of rehabilitation science.
9-34 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Texas

Advanced Rehabilitation Research Training

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

One Baylor Plaza

Houston, TX 77030

drintala@bcm.tmc.edu

public.bcm.tmc.edu/pm&r/education/Fellowships/RehabResearch.html

Principal Investigator: Diana H. Rintala, PhD 713/664-1996

Public Contact: Karstena Ockelberry 713/797-5940; Fax: 713/797-5982

Project Number: H133P020003

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06

$150,000; FY 07 (No-cost extension through 9/30/2008); FY 08 (No-cost extension through 9/30/

2009)

Abstract: The purpose of this program is to train post-doctoral fellows in the skills necessary to

become independent investigators in rehabilitation. This means that the person must be competent in

each major facet of the research process: problem identification, analysis of the current state of knowledge, hypothesis generation based on familiarity with applicable theory, research project design,

mastery of relevant techniques and instrumentation, statistical analysis, interpretation of findings, and

preparation of technical reports and publications. Through this program, fellows develop research

expertise in spinal cord injury, stroke, Parkinson’s disease, amputee rehabilitation, neuropsychological

rehabilitation/cognitive neuropsychology, and rehabilitation outcomes and social policy. Mentors for

this program are 12 faculty members who have substantial extramural funding for research and are

directors of, or affiliated with, one or more of the Department’s 8 research centers. Their disciplines

include physiatry, neuropsychology, social psychology, rehabilitation counseling, nursing, rehabilitation engineering, and physical and occupational therapy. Mentors develop an individualized training

plan for each fellow that includes (1) participation in research projects of the primary and secondary

mentors, (2) development and implementation of an independent research project, and (3) required

didactic course work. Fellows are expected to present and publish their independent research and

prepare grant applications. They also attend, and submit abstracts for presentation at national professional meetings to begin to integrate into the greater rehabilitation research community. Fellows are

evaluated at least every six months. Since the inception of the fellowship, five fellows have been

recruited who have completed their fellowship training. Funding for a sixth fellow is shared with a

fellowship program sponsored by NIH. Long-term follow-up has occurred and will occur annually for

at least five years after the fellows leave the program to determine whether the goal of

producing highly qualified, productive rehabilitation investigators has been met.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-35

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Texas

Advanced Rehabilitation Research Training

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

One Baylor Plaza, Room 600d

Houston, TX 77030

Principal Investigator: Faye C. Tan, MD

Public Contact: 713/873-3875; Fax: 713/873-3874

Project Number: H133P080007

Start Date: July 01, 2008

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $150,000

Abstract: The purpose of this program is to train post-doctoral fellows in the skills necessary to

become independent investigators in rehabilitation. Fellows must be competent in each major facet of

the research process—problem identification, analysis of the current state of knowledge, hypothesis

generation based on familiarity with applicable theory, research project design, mastery of relevant

techniques and instrumentation, statistical analysis, interpretation of findings, and preparation of

technical reports and publications. Through this program, fellows develop research expertise in one of

two potential training tracts: (1) traumatic brain injury/stroke or (2) spinal cord injury. For each track,

the International Classification of Functioning, Disability and Health (ICF) cell-to-society model has

been applied so that the fellow can select from any portion of the spectrum for his/her area of research

focus. Mentors for this program develop an individualized training plan for each fellow that includes

(a) participation in research projects of the primary and secondary mentors, (b) development and

implementation of an independent research project, and (c) required didactic course work drawn from

the Baylor College of Medicine Fundamentals of Clinical Investigation within the Clinical Scientist

Training Program (K-30) and the Department of Physical Medicine and Rehabilitation.
9-36 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Virginia

Advanced Research Training Program

Virginia Commonwealth University

Department of Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0542

www.npy.pmr.vcu.edu/arrt/overview.htm

Principal Investigator: Jeffrey Kreutzer, PhD 804/828-9055

Public Contact: Lee Livingston 804/828-3706; Fax: 804/828-2378

Project Number: H133P040006

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000; FY 07 $150,000; FY 08

$150,000

Abstract: This project is an advanced rehabilitation research training (ARRT) program for individuals

with advanced degrees who are committed to a career in rehabilitation research with a focus on

neurobehavioral recovery and intervention. Training and research activities address brain injury,

aneurysms, brain tumors, and other neurological disorders. Individualized research training plans

emphasizing scientific rigor guide fellows’ choices of training activities. Outstanding mentors, didactic

experiences, and collaborative and independent research activities provide the foundation for the VCU

ARRT program. Mentors include internationally and nationally renowned, distinguished scientists

from the fields of rehabilitation medicine, neuropsychology, psychiatry, neurosurgery, and vocational

rehabilitation. Core courses on ethics, conduct in scientific research, and grant writing are complemented by grand rounds and graduate courses. All fellows must complete and submit a grant application during the second year of their fellowship.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-37

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Washington

University of Washington Advanced Rehabilitation Research Training

University of Washington

Department of Rehabilitation Medicine

1959 NE Pacific Street

Box 356490

Seattle, WA 98195-6490

Principal Investigator: Deborah Kartin, PT PhD; Kurt Johnson, PhD

Public Contact: TBA 206/598-5338; Fax: 206/685-3244

Project Number: H133P080008

Start Date: July 01, 2008

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 08 $149,491

Abstract: The primary goal of the UW-ARRT is to increase the number of successful independent

rehabilitation researchers who not only understand their own area of focus, but also have a working

knowledge of other related Rehabilitation Science fields and have experience in interacting with

experts who are knowledgeable in these other areas. To that end, UW-ARRT provides advanced

rehabilitation research training for five to six highly qualified postdoctoral trainees to enable them to

become successful rehabilitation researchers and to conduct formative and summative evaluation of the

training. UW-ARRT focuses on development of rehabilitation researchers with emphasis on design

and implementation of rehabilitation research, dissemination of research, and grant writing. The comprehensive training provides: (1) immersion in a mentored rehabilitation research experience by matching postdoctoral trainees with highly successful rehabilitation researchers and (2) complementary

didactics (Core and Individualized) to support trainees’ development as rehabilitation researchers. Core

Curriculum is built on an on-going bimonthly seminar specifically designed to: (1) teach and enhance

the critical skills necessary for a successful research career (a general research skills seminar to be held

once/month) and (2) provide for interaction among trainees interested in developing successful research careers in Rehabilitation Sciences and an interdisciplinary cohort of mentors/advisors who have

active and successful Rehabilitation Sciences research programs. The Individualized Didactic Curriculum allows a postdoctoral trainee to enroll, as needed, in additional coursework in research methods,

statistical analysis, and rehabilitation science.
9-38 NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Wisconsin

Clinician Researchers and Engineers: Advanced Rehabilitation

Research Training

Marquette University

Orthopaedic and Rehabilitation Engineering Center

735 North 17th Street

P.O. Box 1881

Milwaukee, WI 53201

depps@mcw.edu

www.orec.org

Principal Investigator: Gerald F. Harris, PhD 414/288-0698

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133P040008

Start Date: September 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000; FY 07 $150,000; FY 08

$150,000

Abstract: This program provides advanced education and training in rehabilitation research to selected

engineers and clinician researchers. The overall goal is to develop expertise, enthusiasm, and productivity in rehabilitation research which results in an increase in the number of rehabilitation-trained

physicians and engineers. Fellows are trained to conduct independent, transdisciplinary research on

problems related to disability and rehabilitation. The specific goal is to produce productive career

researchers. The program is specifically designed to give the postdoctoral trainees the skills needed to

become independent rehabilitation researchers. The postdoctoral trainees experience a program designed to provide eachno: candidate with a unique set of capabilities to succeed as a rehabilitation

researcher. The capstone experience for the postdoctoral trainees is the submission of an extramural

research proposal. Three research areas have been selected that provide opportunities to participate in

advanced-level research: motion analysis, spasticity, and accessible medical instrumentation. Four

clinical areas give participants clinical experiences to link to their research experiences: spasticity

management, pain management, spinal cord injury, and motion analysis. As part of the professional

development of the postdoctoral trainees and to increase the exposure to rehabilitation research, crossdisciplinary teaching is encouraged. At the completion of the program, all trainees have completed a

directed independent research project, written and submitted scientific manuscripts, prepared a complete extramural grant proposal, and gained experience in managing a functional research team.
NIDRR Program Directory FY 2008 - Capacity Building for Rehabilitation Research and Training 9-39

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Wisconsin

Advanced Rehabilitation Research Training in Pediatric Mobility

Marquette University

Orthopaedic and Rehabilitation Engineering Center

735 North 17th Street

P.O. Box 1881

Milwaukee, WI 53201

depps@mcw.edu

www.orec.org

Principal Investigator: Gerald F. Harris, PhD 414/288-0698

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133P080005

Start Date: September 01, 2008

Length: 60 months

NIDRR Officer: William V. Schutz, PhD, MSW, MPH

NIDRR Funding: FY 08 $150,000

Abstract: The goal of this project is to develop in-depth expertise, enthusiasm, and productivity in

rehabilitation research to increase the number of physicians and engineers qualified to conduct independent, transdisciplinary research on problems related to disability, rehabilitation, and pediatric

mobility. The program is specifically designed to give postdoctoral trainees the skills needed to become

productive, independent rehabilitation researchers. The research component of the training program

consists of 3 mentorship teams capable of providing a 20 - 25 percent support effort on a continued

basis. Qualified trainees are enrolled in the research training program for 24 to 36 months. Three

research areas (RAs) support opportunities for career oriented contributions to the field of pediatric

mobility. The RAs are Skeletal and Connective Tissue Biology, Assistive Devices, and Foot and

Ankle Mobility. Fellowship research requirements include pilot study completion and refinement,

multiple journal article submissions, and completion of extramural proposal(s). The capstone experience for the postdoctoral trainees is the completion of a sponsored workshop in their field of study with

nationally recognized leaders in attendance. A team of mentors with qualifications specific to each of

these RAs support candidates entering the program to enhance their current skills and offer additional,

high level training and experience.
Subject Index

No subject index was created for this version of the NIDRR Program Directory. The Directory remains in database format at www.naric.com/research/pd. This format is considerably more effective for

subject-oriented organization of the material in the Directory.

For assistance in searching the Program Directory database, contact the staff at NARIC at 800/346-

2742 or email jchaiken@heitechservices.com
Grantees

Grantees B-3

AbleLink Technologies, Inc. H133S080007 Colorado Springs, CO 3-59

AbleLink Technologies, Inc. H133S080008 Colorado Springs, CO 3-60

AbleLink Technologies, Inc. H133S080014 Colorado Springs, CO 3-62

AbleLink Technologies, Inc. H133S080042 Colorado Springs, CO 3-61

AbleLink Technologies, Inc. H133S080044 Colorado Springs, CO 3-58

AbleLink Technologies, Inc. H133S080066 Colorado Springs, CO 3-72

Adaptive Environments Center, Inc. H133A060092 Boston, MA 8-3

Advanced Medical Electronics

Corporation H133S080068 Maple Grove, MN 3-76

Advanced Medical Electronics

Corporation H133S080032 Maple Grove, MN 3-65

Albert Einstein Healthcare Network H133A070040 Elkins Park, PA 2-38

Albert Einstein Healthcare Network H133G050219 Elkins Park, PA 2-85

Albert Einstein Healthcare Network H133G060086 Philadelphia, PA 2-89

Albert Einstein Healthcare Network H133G070143 Elkins Park, PA 2-87

Albert Einstein Healthcare Network H133G080066 Elkins Park, PA 2-86

Anne P. Sullivan-Soydan, ScD H133F080030 Acton, MA 9-18

Assaf Y. Dvorkin, PhD H133F080010 Chicago, IL 9-16

Assistech Systems, LLC H133S080041 Eugene, OR 4-37

Barbara Altman H133F060011 Rockville, MD 9-14

Baylor College of Medicine H133G080042 Houston, TX 4-36

Baylor College of Medicine H133P020003 Houston, TX 9-34

Baylor College of Medicine H133P080007 Houston, TX 9-35

Blue Sky Designs, Inc. H133S060096 Minneapolis, MN 3-77

Boston University H133A050006 Boston, MA 7-4

Boston University H133B040026 Boston, MA 4-9

Boston University H133G040201 Boston, MA 2-75

Boston University H133G060071 Boston, MA 4-23

Boston University H133G070140 Boston, MA 4-24

Boston University H133P070001 Boston, MA 9-26

Boston University Medical Campus H133P050001 Boston, MA 9-25

Boston University Medical Center

Hospital H133N060024 Boston, MA 2-55

Carnegie Mellon University H133E080019 Pittsburgh, PA 3-23

Carolinas HealthCare System H133A070042 Charlotte, NC 2-33

Carolinas Medical Center H133A080035 Charlotte, NC 2-34

Children’s Hospital H133B060012 Boston, MA 4-10

Children’s Hospital Medical Center H133G050239 Cincinnati, OH 4-30

Children’s Hospital Medical Center H133G060167 Cincinnati, OH 4-31

Clarke School for the Deaf H133G060116 Northampton, MA 3-47

Cornell University H133A060088 Ithaca, NY 8-4

Cornell University H133B031111 Ithaca, NY 5-4

Cornell University H133B040013 Ithaca, NY 1-6

Cornell University H133G040255 Ithaca, NY 3-49

Cornell University H133G040265 Ithaca, NY 5-8

Craig Hospital H133A060038 Englewood, CO 2-19

Craig Hospital H133A060103 Englewood, CO 2-18
B-4 Grantees

Craig Hospital H133A070022 Englewood, CO 2-20

Craig Hospital H133N060005 Englewood, CO 2-51

CreateAbility Concepts, Inc. H133S080054 Indianapolis, IN 3-64

CreateAbility Concepts, Inc. H133S080075 Indianapolis, IN 3-75

Custom Technology Ltd. H133S080023 Madison, WI 3-71

Dancing Dots Braille Music

Technology, L.P. H133S070089 Valley Forge, PA 3-82

Dartmouth College H133A080063 Lebanon, NH 9-8

Dartmouth College H133G050230 Concord, NH 1-16

Dartmouth Medical School H133G050181 Lebanon, NH 1-17

Drexel University H133G060254 Philadelphia, PA 2-88

Duke University H133A060062 Durham, NC 3-30

Duke University H133E030018 Durham, NC 3-18

Duke University H133E080011 Durham, NC 3-19

Duke University H133G070058 Durham, NC 4-29

Feinberg School of Medicine H133B040032 Chicago, IL 5-3

Gallaudet Universitiy H133E080006 Washington, DC 3-6

Gallaudet University H133E030006 Washington, DC 3-5

Gallaudet University H133G060065 Washington, DC 3-36

George Mason University H133A040016 Fairfax, VA 2-43

Georgia Institute of Technology H133E030035 Atlanta, GA 3-7

Georgia Institute of Technology H133E060061 Atlanta, GA 3-8

Georgia Institute of Technology H133E080003 Atlanta, GA 3-10

Georgia Institute of Technology

Center for Assistive Technology and

Environmental Access (CATEA) H133E070026 Atlanta, GA 3-9

Georgia Institute of Technology

Center for Assistive Technology and

Environmental Access (CATEA) H133G070063 Atlanta, GA 3-39

Georgia Tech Research Corporation H133G040324 Atlanta, GA 3-38

He Huang, PhD H133F080006 Kingston,RI 9-17

HeiTech Services, Inc. ED-08-CO-0095 Landover, MD 7-12

Hunter College of CUNY H133B040014 New York, NY 1-7

Hyung Soon Park, PhD H133F080021 Chicago, IL 9-13

Janet A. Prvu-Bettger, ScD H133F080014 Philadelphia, PA 9-20

JFK Johnson Rehabilitation Institute H133A031713 Edison, NJ 2-28

JFK Johnson Rehabilitation Institute H133A070030 Edison, NJ 2-29

Joanne Nicholson, PhD H133F080009 Worcester, MA 9-15

Johns Hopkins School of Medicine H133A070045 Baltimore, MD 2-24

Kent State University H133G080158 Kent, OH 4-32

Kessler Medical Rehabilitation

Research and Education Center

(KMRREC) H133G080136 West Orange, NJ 3-48

Kessler Medical Rehabilitation

Research and Education Corporation

(KMRREC) H133A070037 West Orange, NJ 2-30

Kessler Medical Rehabilitation
Grantees B-5

Research and Education Corporation

(KMRREC) H133G070138 West Orange, NJ 2-83

Kessler Medical Rehabilitation

Research and Education Corporation

(KMRREC) H133N060022 West Orange, NJ 2-57

Knowledge Athletes, Inc. H133S080027 Fairport, NY 3-66

Life Technologies, LLC H133S070096 Eugene, OR 3-79

Life Technologies, LLC H133S080077 Eugene, OR 3-80

Los Amigos Research & Education

Institute, Inc. H133B031002 Downey, CA 2-4

Louisiana State University H133A080069 Baton Rouge, LA 4-16

Madonna Rehabilitation Hospital H133G070209 Lincoln, NE 2-80

Marquette University H133E020729 Milwaukee, WI 3-28

Marquette University H133G060252 Milwaukee, WI 2-96

Marquette University H133P040008 Milwaukee, WI 9-38

Marquette University H133P080005 Milwaukee, WI 9-39

Marshall Elevator Company H133S050136 Pittsburgh, PA 3-81

Mashantucket Pequot Tribal Nation H133A031706 Mashantucket, CT 9-5

Mayo Clinic H133A070013 Rochester, MN 2-27

Medgraph, Inc. H133S080013 Rochester, NY 3-68

Medical College of Wisconsin H133G060142 Milwaukee, WI 3-56

Medical College of Wisconsin H133G060155 Milwaukee, WI 3-57

Medical University of South Carolina H133A080064 Charleston, SC 9-10

Medical University of South Carolina H133G050165 Charleston, SC 2-90

Medical University of South Carolina H133G060126 Charleston, SC 2-91

Meeting the Challenge, Inc. H133A060079 Colorado Springs, CO 8-11

Memorial Herman|The Institute for

Rehabilitation and Research (TIRR) H133G070222 Houston, TX 2-92

MetroHealth System H133N060017 Cleveland, OH 2-59

Mississippi State University H133A070001 Mississippi State, MS 1-11

Motion Control, Inc. H133S070084 Salt Lake City, UT 3-83

Motion Control, Inc. H133S080017 Salt Lake City, UT 3-70

Mount Sinai School of Medicine H133A070033 New York, NY 2-31

Mount Sinai School of Medicine H133A080053 New York, NY 2-32

Mount Sinai School of Medicine H133B040033 New York, NY 2-9

Mount Sinai School of Medicine H133N060027 New York, NY 2-58

Mount Sinai School of Medicine H133P050004 New York, NY 9-31

National Public Radio H133G060187 Washington, DC 3-35

National Public Radio H133G070093 Washington, DC 3-37

National Rehabilitation Hospital/

MedStar Research Institute H133N060028 Washington, DC 2-52

National Rehabilitation Hospital/

MedStar Research Institute H133B031114 Washington, DC 2-5

New Jersey Institute of Technology H133E050011 Newark, NJ 3-15

North Carolina State University H133G070135 Raleigh, NC 3-50

Northeastern University H133G070150 Boston, MA 7-11

Northwestern University H133E080009 Chicago, IL 3-13
B-6 Grantees

Northwestern University H133G070089 Chicago, IL 3-41

Northwestern University H133P040007 Chicago, IL 9-22

Northwestern University H133P080006 Chicago, IL 9-24

Northwestern University

Rehabilitation Institute Research

Corporation H133A030807 Chicago, IL 2-21

Obslap, Inc. H133S070082 Eugene, OR 3-78

Ohio State University H133A080023 Columbus, OH 2-36

Ohio Valley Center for Brain Injury

Prevention and Rehabilitation H133A070029 Columbus, OH 2-35

ORC Macro ED-04-CO-0018

/0007 Silver Spring, MD 7-13

Oregon Health and Science University H133A080031 Portland, OR 2-37

Oregon Health and Science University H133B040034 Portland, OR 2-10

Oregon Health and Science University H133G070129 Portland, OR 3-52

Oregon Health and Science University H133G070214 Portland, OR 2-84

Oregon Health and Science University H133G080162 Portland, OR 3-53

Oregon State University H133E030009 Corvallis, OR 3-20

Portland State University H133B040038 Portland, OR 4-12

Portland State University H133G070190 Portland, OR 4-33

Portland State University H133G080132 Portland, OR 4-34

Preethy Samuel, PhD H133F080024 Detroit, MI 9-19

Public Health Institute H133A060098 Oakland, CA 8-12

RAF Models & Displays H133G060284 Winston-Salem, NC 3-51

Rehabilitation Institute of Chicago H133G060124 Chicago, IL 2-71

Rehabilitation Institute of Chicago H133N060014 Chicago, IL 2-54

Rehabilitation Institute Research

Corporation H133A080045 Chicago, IL 2-23

Rehabilitation Institute Research

Corporation H133B031127 Chicago, IL 2-6

Rehabilitation Institute Research

Corporation H133B080031 Chicago, IL 2-7

Rehabilitation Institute Research

Corporation H133G060055 Chicago, IL 3-40

Rehabilitation Institute Research

Corporation H133G060169 Chicago, IL 2-72

Rehabilitation Institute Research

Corporation H133G070074 Chicago, IL 2-73

Rehabilitation Institute Research

Corporation H133E070013 Chicago, IL 3-12

RehabTek, LLC H133S080076 Wilmette, IL 3-74

Santa Clara Valley Medical Center

(SCVMC) H133A070038 San Jose, CA 2-16

Santa Clara Valley Medical Center

(SCVMC) H133G080165 San Jose, CA 2-66

Santa Clara Valley Medical Center

(SCVMC) H133G080168 San Jose, CA 2-65
Grantees B-7

SEDL H133A031402 Austin, TX 7-7

SEDL H133A060028 Austin, TX 7-8

SEDL H133A080007 Austin, TX 1-14

Sendero Group, LLC H133G060035 Davis, CA 3-33

Shepherd Center H133G070171 Atlanta, GA 2-69

Shepherd Center, Inc. H133G080031 Atlanta, GA 2-70

Shepherd Center, Inc. H133G080153 Atlanta, GA 4-20

Shepherd Center, Inc. H133N060009 Atlanta, GA 2-53

SUNY Research Foundation H133B080012 New York, NY 5-5

Syracuse University H133A060033 Syracuse, NY 1-13

Syracuse University H133A060094 Atlanta, GA 8-6

Syracuse University H133A080014 Syracuse, NY 4-18

Syracuse University H133P070004 Syracuse, NY 9-32

Texas Southern University H133A031704 Houston, TX 9-11

The Institute for Rehabilitation and

Research (TIRR) H133A060091 Houston, TX 8-9

The Institute for Rehabilitation and

Research (TIRR) H133A070043 Houston, TX 2-42

The Institute for Rehabilitation and

Research (TIRR) H133B031117 Houston, TX 4-14

The Institute for Rehabilitation and

Research (TIRR) H133N060003 Houston, TX 2-62

The Sandbox Learning Company H133G080151 Cornelius, NC 4-28

The Sandbox Learning Company H133S080021 Cornelius, NC 3-69

The Smith-Kettlewell Eye Research

Institute H133A060056 San Francisco, CA 3-29

The Smith-Kettlewell Eye Research

Institute H133E060001 San Francisco, CA 3-3

The University of Kansas H133B060018 Lawrence, KS 4-8

The University of Texas Southwestern

Medical Center H133A070024 Dallas, TX 2-39

The University of Texas Southwestern

Medical Center H133A070027 Dallas, TX 2-40

Thomas Jefferson University H133N060011 Philadelphia, PA 2-60

Through the Looking Glass H133A080034 Berkeley, CA 4-15

Touch Graphics, Inc. H133S080030 New York, NY 3-67

TransCen, Inc. H133A060085 Rockville, MD 8-5

UMBC H133G050354 Baltimore, MD 3-43

University at Buffalo|The State

University of New York| H133A050008 Buffalo, NY 7-5

University at Buffalo|The State

University of New York| H133A080050 Buffalo, NY 7-6

University at Buffalo|The State

University of New York| H133E030025 Buffalo, NY 3-16

University at Buffalo|The State

University of New York| H133E050004 Buffalo, NY 3-17

University at Buffalo|The State
B-8 Grantees

University of New York| H133G080043 Buffalo, NY 4-27

University of Alabama H133G050222 Birmingham, AL 2-64

University of Alabama/Birmingham H133A060039 Birmingham, AL 7-3

University of Alabama/Birmingham H133A070039 Birmingham, AL 2-15

University of Alabama/Birmingham H133N060021 Birmingham, AL 2-50

University of Arkansas H133A060044 Little Rock, AR 1-10

University of California, Davis H133B031118 Davis, CA 2-3

University of California, San Francisco H133B031102 San Francisco, CA 4-3

University of California, San Francisco H133B080002 San Francisco, CA 4-4

University of Colorado H133E040019 Denver, CO 3-4

University of Colorado Health

Sciences Center H133A070006 Denver, CO 2-17

University of Colorado Health

Sciences Center H133G070163 Boulder, CO 5-6

University of Delaware H133G080047 Newark, DE 3-34

University of Illinois at Chicago H133A040007 Chicago, IL 9-6

University of Illinois at Chicago H133A060066 Chicago, IL 2-22

University of Illinois at Chicago H133A060097 Chicago, IL 8-7

University of Illinois at Chicago H133B050003 Chicago, IL 9-3

University of Illinois at Chicago H133B080009 Chicago, IL 4-6

University of Illinois at Chicago H133E070029 Chicago, IL 3-11

University of Illinois at Chicago H133G060224 Chicago, IL 4-21

University of Illinois at Chicago H133G070006 Chicago, IL 2-74

University of Illinois at Chicago H133G080120 Chicago, IL 3-42

University of Illinois at Chicago H133P060003 Chicago, IL 9-23

University of Kansas H133B031133 Lawrence, KS 4-7

University of Kansas H133G060238 Kansas City, KS 4-22

University of Massachusetts Boston H133A080042 Boston, MA 4-17

University of Massachusetts Boston H133B070001 Boston, MA 1-3

University of Medicine and Dentistry

of New Jersey H133P050006 Scotch Plains, NJ 9-29

University of Medicine and Dentistry

of New Jersey/New Jersey Medical

School (UMDNJ/NJMS) and|Kessler

Medical Rehabilitation Research and

Education Center (KMRREC) H133P070007 West Orange, NJ 9-30

University of Miami H133G070119 Miami, FL 2-67

University of Miami H133G080150 Miami, FL 2-68

University of Michigan H133E060064 Ann Arbor, MI 3-14

University of Michigan H133G050151 Ann Arbor, MI 2-76

University of Michigan H133G070020 Ann Arbor, MI 2-78

University of Michigan H133G070044 Ann Arbor, MI 2-77

University of Michigan H133N060032 Ann Arbor, MI 2-56

University of Michigan H133P030004 Ann Arbor, MI 9-27

University of Minnesota H133A080049 Minneapolis, MN 2-26

University of Minnesota H133B080005 Minneapolis, MN 4-11

University of Minnesota H133G080029 Minneapolis, MN 5-7
Grantees B-9

University of Missouri H133B031120 Columbia, MO 2-8

University of Missouri/Columbia H133A060089 Columbia, MO 8-10

University of Missouri/Columbia H133P050005 Columbia, MO 9-28

University of Montana H133B030501 Missoula, MT 1-4

University of Montana H133B080023 Missoula, MT 1-5

University of Montana H133G070196 Missoula, MT 4-26

University of Nebraska at Omaha H133G040118 Omaha, NE 2-81

University of Nebraska at Omaha H133G080023 Omaha, NE 2-82

University of Pennsylvania H133B080029 Philadelphia, PA 4-13

University of Pittsburgh H133A021916 Pittsburgh, PA 3-31

University of Pittsburgh H133E040012 Pittsburgh, PA 3-21

University of Pittsburgh H133E070024 Pittsburgh, PA 3-22

University of Pittsburgh H133N060019 Pittsburgh, PA 2-61

University of Rochester H133A031105 Rochester, NY 9-9

University of South Florida H133B040024 Tampa, FL 4-5

University of Southern California H133E080024 Los Angeles, CA 2-14

University of Texas Medical Branch H133A070026 Galveston, TX 2-41

University of Texas Medical Branch H133G050079 Galveston, TX 4-35

University of Texas Medical Branch H133G080163 Galveston, TX 5-9

University of Texas Medical Branch H133P040003 Galveston, TX 9-33

University of Washington H133A020103 Seattle, WA 2-45

University of Washington H133A031739 Seattle, WA 3-32

University of Washington H133A040004 Seattle, WA 2-46

University of Washington H133A060070 Seattle, WA 7-10

University of Washington H133A060107 Seattle, WA 2-47

University of Washington H133A070032 Seattle, WA 2-49

University of Washington H133A070047 Seattle, WA 2-48

University of Washington H133A070048 Mountlake Terrace, WA 8-13

University of Washington H133B031129 Seattle, WA 2-11

University of Washington H133B080024 Seattle, WA 2-13

University of Washington H133B080025 Seattle, WA 2-12

University of Washington H133G050022 Seattle, WA 2-93

University of Washington H133G070016 Seattle, WA 2-94

University of Washington H133N060033 Seattle, WA 2-63

University of Washington H133P080008 Seattle, WA 9-37

University of Wisconsin/Madison H133E030012 Madison, WI 3-24

University of Wisconsin/Madison H133E040013 Madison, WI 3-25

University of Wisconsin/Madison H133E080022 Madison, WI 3-27

University of Wisconsin/Milwaukee H133G050340 Milwaukee, WI 3-55

University of Wisconsin/Milwaukee H133G060218 Milwaukee, WI 2-95

Vanderbilt University School of

Medicine H133G060012 Nashville, TN 3-54

Vcom3D, Inc. H133S070088 Orlando, FL 3-73

Vcom3D, Inc. H133S080039 Orlando, FL 3-63

Virginia Commonwealth University H133A060087 Richmond, VA 7-9

Virginia Commonwealth University H133A070036 Richmond, VA 2-44

Virginia Commonwealth University H133A080027 Richmond, VA 1-15
B-10 Grantees

Virginia Commonwealth University H133A080060 Richmond, VA 9-13

Virginia Commonwealth University H133B040011 Richmond, VA 1-9

Virginia Commonwealth University H133G080123 Richmond, VA 5-10

Virginia Commonwealth University H133P040006 Richmond, VA 9-36

Washington State University H133G070055 Spokane, WA 5-11

Wayne State University H133A080044 Detroit, MI 2-25

Wayne State University H133G060267 Detroit, MI 4-25

Wayne State University H133G080064 Detroit, MI 2-79

Western Oregon University H133A060075 Eugene, OR 4-19

WGBH Educational Foundation H133G050278 Boston, MA 3-44

WGBH Educational Foundation H133G070122 Boston, MA 3-45

WGBH Educational Foundation H133G080093 Boston, MA 3-46

Wright State University H133B040012 Kettering, OH 1-8
Projects by State

Projects by State C-3

Alabama

Constraint-Induced Movement Therapy

Modified for Rehabilitating Arm Function

in Stroke Survivors with Plegic Hands........ 2-64

National Spinal Cord Injury Statistical

Center (NSCISC) .......................................... 7-3

UAB Model Spinal Cord Injury Care

System......................................................... 2-50

University of Alabama at Birmingham

(UAB) Traumatic Brain Injury Model

System (UAB TBIMS) ............................... 2-15

Arkansas

Improve the Employment Outcomes for the

Low Functioning Deaf (LFD) Population ... 1-10

California

A New Measure of Subjective Fatigue in

Persons with Traumatic Brain Injury ........... 2-65

Accessible Location Information Delivered

via GPS Cell Phone for People with Visual

Impairments................................................. 3-33

Evaluating Dysphagia in Individuals with

Spinal Cord Injury: Assessing Incidence,

Associated Factors, and Preventable

Complications ............................................. 2-66

Fundamental Issues in Wayfinding

Technologies ............................................... 3-29

National Center for Parents with Disabilities

and Their Families....................................... 4-15

Northern California Traumatic Brain Injury

Model System of Care ................................. 2-16

Personal Assistance Services (PAS) in the

21st Century .................................................. 4-4

Rehabilitation Engineering Research Center

for Successful Aging with Disability:

Optimizing Participation Through

Technology (OPTT-RERC) ........................ 2-14

Rehabilitation Engineering Research

Center: Develop and Evaluate Technology

for Low Vision, Blindness, and MultiSensory Loss ................................................. 3-3

Rehabilitation Research and Training

Center in Neuromuscular Diseases (RRTC/

NMD) ........................................................... 2-3

Rehabilitation Research and Training

Center on Aging-Related Changes in

Impairment for Persons Living with

Physical Disabilities ...................................... 2-4

Rehabilitation Research and Training

Center on Personal Assistance Services ........ 4-3

Colorado

ATLAS: An Accessible Testing, Learning,

and Assessment System for Individuals with

Intellectual Disabilities to Facilitate

Inclusion and Access to the General

Curriculum .................................................. 3-72

Collaborative Spinal Cord Injury Model

Systems Centers Program: Improving

Spinal Cord Injury Rehabilitation

Outcomes .................................................... 2-18

DBTAC Rocky Mountain ADA Center -

Region VIII ................................................. 8-11

Development and Evaluation of a LocationBased Multimedia System for Providing

Access to Information in Community

Settings........................................................ 3-58

Development and Evaluation of a Universal

Design Multimedia Approach to Enable

Autonomous Composition by Students and

Adults with Intellectual Disabilities............. 3-59

Disability and Business Technical

Assistance Center (DBTAC) — Pacific

ADA Center ................................................ 8-12

Evaluation of a Universally Designed

Multimedia Approach to Promote

Independent Access to Instant Messaging

Technology for Individuals with Intellectual

Disabilities................................................... 3-60

Money Coach: A Money Management

System to Facilitate Independent Living for

Individuals with Intellectual Disabilities...... 3-61

Pocket Email: Development and Evaluation

of an Accessible PDA-Based Email

Program to Facilitate Remote

Communication for Individuals with

Intellectual Disabilities ................................ 3-62

Public Spending for Disability in the United

States: A Comparative, Longitudinal Study . 5-6

Rehabilitation Engineering Research Center

for the Advancement of Cognitive

Technologies (RERC-ACT) ......................... 3-4
C-4 Projects by State

The National Data and Statistical Center for

the Traumatic Brain Injury Model

Systems ....................................................... 2-19

The Rocky Mountain Regional Brain Injury

System (RMRBIS) ...................................... 2-20

The Rocky Mountain Regional Spinal

 Injury System ............................................. 2-51

UCHSC Burn Model System Data

Coordination Center (BMS/DCC) .............. 2-17

Connecticut

Building Research Capacity Through

Collaboration among American Indian

Tribes in Connecticut and Rhode Island........ 9-5

Delaware

Multimodal Access to Information

Graphics...................................................... 3-34

District of Columbia

Accessible Digital Radio Broadcast

Services....................................................... 3-35

An Automatic Fitting Algorithm for

Cochlear Implant ......................................... 3-36

National Capital Spinal Cord Injury Model

System......................................................... 2-52

Personal Audio Information Service ........... 3-37

Rehabilitation Engineering Research

Center on Hearing Enhancement .................. 3-5

Rehabilitation Engineering Research

Center on Hearing Enhancement .................. 3-6

Rehabilitation Research and Training

Center on Spinal Cord Injury: Promoting

Health and Preventing Complications

through Exercise ........................................... 2-5

Florida

Exercise Treatment of Obesity-Related

Secondary Conditions in Adults with

Paraplegia .................................................... 2-68

Investigating the Effects of Snoezelen in

Children Recovering from Severe Brain

Injury ........................................................... 2-67

Mobile Language Reference for Deaf and

Hard-of-Hearing K-12 Students.................. 3-73

Rehabilitation Research and Training

Center for Children’s Mental Health ............. 4-5

Signing Science Pictionary for Young

Learners who are Deaf or Hard of

Hearing ....................................................... 3-63

Georgia

Assessing Safety Risk after Traumatic Brain

Injury ........................................................... 4-20

Biopsychosocial Factors that Predict TBI

Post-Acute Rehabilitation Outcomes........... 2-69

DBTAC: Southeast ADA Center -

Region IV ..................................................... 8-6

Evaluating the Effects of Activity-Based

Therapy for Individuals with Chronic

Spinal Cord Injury ....................................... 2-70

Georgia Regional Spinal Cord Injury Care

System......................................................... 2-53

Inclusive Indoor Play .................................. 3-38

Rehabilitation Engineering Research Center

for Wheeled Mobility in Everyday Life ...... 3-10

Rehabilitation Engineering Research Center

for Wireless Technologies ............................. 3-8

Rehabilitation Engineering Research Center

on Wheeled Mobility ..................................... 3-7

Rehabilitation Engineering Research Center

on Workplace Accommodations ................... 3-9

Workplace Accommodation Wizard: An

Assessment and Accommodation Tool for

Employers ................................................... 3-39

Illinois

A Low-Cost Portable/Wearable Device for

Intelligent Stretching and Movement

Training of Hypertonic Forearm in Stroke

with Outcome Evaluation ............................ 3-74

Advanced Rehabilitation Research

Training Project in Rehabilitation Services

Research ...................................................... 9-24

Advanced Training in Translational and

Transformational Research to Improve

Vocational Outcomes for Persons with

Disabilities................................................... 9-23

Augmenting Language Therapy for

Aphasia: A Randomized Double-Blind

Placebo-Controlled Trial of Levodopa in

Combination with Speech-Language

Therapy ....................................................... 2-73
Projects by State C-5

Center for Strategic Capacity Building on

Minorities with Disabilities Research ............ 9-6

Development of a Neural-Machine Interface

for Lower-Limb Prosthesis Control ............. 9-17

DBTAC: Great Lakes ADA Center .............. 8-7

Effectiveness of a Teleconference Fatigue

Management Program for People with

Multiple Sclerosis........................................ 2-74

Enhanced Motor Recovery Using

Serotonergic Agents.................................... 2-71

Health Services Research DRRP on

Medical Rehabilitation ................................ 2-21

Midwest Regional Spinal Cord Injury Care

System (MRSCIS) ...................................... 2-54

Midwest Regional Traumatic Brain Injury

Model System: Innovative Approaches to

Improve Cognition, Function, and

Community Living ...................................... 2-23

Multi-Joint/DOFs Diagnosis and Treatment

of Upper Limb in Patients Post Stroke

Using an Exoskeleton Robot ....................... 9-13

Overcoming Gravity Induced Arm and

Hand Dysfunction to Restore Functional

Reaching Following Stroke ......................... 3-41

Promoting Health, Empowerment, and

Community Integration Among People

with HIV/AIDS: The Medication

Adherence Program Study-II (MAPS-2) ..... 4-21

Reducing Obesity and Obesity-Related

Secondary Conditions in Adolescents with

Disabilities................................................... 2-22

Rehabilitation Engineering Research Center

on Prosthetics and Orthotics ........................ 3-13

Rehabilitation Engineering Research Center

on Recreational Technologies and Exercise

Physiology Benefiting Persons with

Disabilities (RERC RecTech) ..................... 3-11

Rehabilitation of Reaching in Chronic

Stroke Using an Anti-Gravity Force Field .. 2-72

Rehabilitation Research and Training Center

for Health and Function Across the

Lifespan of Individuals with Intellectual and

Developmental Disabilities............................ 4-6

Rehabilitation Research and Training Center

on Enhancing the Functional and

Employment Outcomes of Individuals Who

Experience a Stroke ...................................... 2-7

Rehabilitation Research and Training Center

on Measuring Rehabilitation Outcomes and

Effectiveness ................................................. 5-3

Rehabilitation Research and Training Center

on Technology Promoting Integration for

Stroke Survivors: Overcoming Social

Barriers.......................................................... 2-6

Rehabilitation Robotics and

Telemanipulation Machines Assisting

Recovery from Stroke Rehabilitation

Engineering Research Center (MARSRERC) ........................................................ 3-12

Rehabilitation Science for Basic Scientists

and Engineers: An Advanced Training

Program....................................................... 9-22

University of Illinois at Chicago National

Research and Training Center on Psychiatric

Disability ....................................................... 9-3

Video Gaming Technology to Promote

Health and Fitness Among Adolescents

with Disabilities........................................... 3-42

Virtual Reality-Based Assessment Tool for

Spatial Neglect Following Stroke ................ 9-16

Web-Based Treatment for Aphasia .............. 3-40

Indiana

Hearing Companion: Handheld Portable

Sound Identification and Critical Alerting

Functionality for People Who Are Deaf or

Have Hearing Loss ..................................... 3-75

SoundCompass - A Wearable Sound

Direction and Motion Detector for People

who are Deaf or Hard of Hearing ............... 3-64

Kansas

Combining Technologies to Maximize

Outcomes: Telemedicine and Online

Training Program for Parents of Children

with Autism................................................. 4-22

Rehabilitation Research and Training Center

on Measurement and Interdependence in

Community Living (RRTC/MICL) ............... 4-8

Rehabilitation Research and Training Center

 on Policies Affecting Families of Children

with Disabilities............................................. 4-7
C-6 Projects by State

Louisiana

Evacuation Methodology and

Understanding Behavior of Persons with

Disabilities in Disasters: A Blueprint for

Emergency Planning Solutions ................... 4-16

Maryland

ABLEDATA............................................... 7-13

DBTAC: Mid-Atlantic ADA Center ............. 8-5

Demographic Soup: Disentangling the

Conceptual, Political, and Methodological

Dimensions of Disability Statistics .............. 9-14

Johns Hopkins University Burn Injury

Rehabilitation Model System (JHUBIRMS) ...................................................... 2-24

National Rehabilitation Information Center

(NARIC) ..................................................... 7-12

Optimized Hands-Free Speech

Recognition ................................................. 3-43

Massachusetts

A Center on Postsecondary Education for

Students with Intellectual Disabilities.......... 4-17

A Mixed Methods Study of Parenting,

Children, and Recovery in Mothers with

Severe Psychiatric Disabilities..................... 9-15

A Randomized Trial of Realignment

Therapy for Treatment of Medial Knee

Osteoarthritis ............................................... 2-75

A Survey of Postsecondary Disability

Services Use by Students with Psychiatric

Disabilities................................................... 9-18

Access to Locally Televised On-Screen

Information: Auditory Messaging and

Captions During Emergency Broadcasts ..... 3-44

Advanced Research Training Program in

Psychiatric Rehabilitation ............................ 9-26

Caption Accuracy Metrics Development

Project ......................................................... 3-46

Captioning Solutions for Handheld Media

and Mobile Devices Development .............. 3-45

Development of Measures of Participation

and Environment for Children with

Disabilities................................................... 4-24

EVIDAAC: A Database of Appraised

Evidence in Augmentative and Alternative

Communication ........................................... 7-11

Innovative Knowledge Dissemination and

Utilization for Disability and Professional

Organizations and Stakeholders .................... 7-4

Instrument to Measure RecoveryPromoting Competence Among Providers

Serving Spanish Speaking Mental Health

Consumers .................................................. 4-23

Minimal Classroom Requirements for

Optimal Acoustic Access to Speech by

Children with and Without Hearing Loss.... 3-47

New England Disability and Business

Technical Assistance Center - Region I ......... 8-3

The New England Regional Spinal Cord

Injury Center ............................................... 2-55

Opening Doors for Children with

Disabilities and Special Health Care

Needs .......................................................... 4-10

Post-Doctoral Fellowship in Rehabilitation

Outcomes and Effective Research ............... 9-25

Rehabilitation Research and Training

Center for Recovery and Recovery

 Oriented Psychiatric Rehabilitation for

Persons with Long-Term Mental Illness ........ 4-9

Rehabilitation Research and Training

Center for Vocational Rehabilitation

Research ........................................................ 1-3

Michigan

Adapted Assessment of Speed of

Information Processing in Children with

Cerebral Palsy ............................................. 2-77

Michigan Traumatic Brain Injury Model

System (SEMTBIS) .................................... 2-25

Neuroanatomical Correlates of Positive

Psychology Among People with Traumatic

Brain Injury: A Biopsychosocial Model ...... 2-79

Pathways to Depression: An Examination

of Vulnerability and Stress in Adults with

Spinal Cord Injury ....................................... 2-78

Psychometric Evaluation of the Family

Quality of Life Survey for Minority

Families....................................................... 9-19

Rehabilitation Engineering Research

Center on Wheelchair Transportation

Safety .......................................................... 3-14
Projects by State C-7

Sensorimotor Training and Assessment in

Adults with Hemiplegic Cerebral Palsy:

The ULTrA Program ................................... 2-76

The UMHS/MSU/AACIL Rehabilitation

Research Training Program ......................... 9-27

University of Michigan Model Spinal Cord

Injury Care System...................................... 2-56

Work Environment and Quality of Life Outcomes: A Comparison of the Experiences of

Formal and Informal Caregivers of Persons

with Spinal Cord Injuries ............................ 4-25

Minnesota

Connectivity to Modern Electronics for the

Hearing Disabled ........................................ 3-65

Development and Use of a Multi-State

Database on Individual Outcomes and their

Predictors for Persons with Intellectual and

Developmental Disabilities in the US ............ 5-7

Health Care Coordination for Individuals

with Physical Disabilities: Critical Elements

and Consumer Outcomes ............................ 2-26

Mayo Clinic Traumatic Brain Injury Model

System......................................................... 2-27

Powered Mounting and Positioning

System......................................................... 3-77

Rehabilitation Research and Training Center

for Community Living and Employment for

Individuals with Intellectual and

Developmental Disabilities.......................... 4-11

Wireless Wrist Device to Alert the Deaf of

Sounds and Events in Their Environment ... 3-76

Mississippi

Vocational Rehabilitation: Transition

Services that Lead to Competitive

Employment Outcomes for Transition-Age

Individuals with Blindness or Other Visual

Impairments................................................. 1-11

Missouri

Arthritis Rehabilitation Research and

Training Center (MARRTC) ......................... 2-8

DBTAC - Great Plains ADA Center -

Region VII .................................................. 8-10

Health Activity Rehabilitation Research

Training Center (HARRTC) ....................... 9-28

Montana

CIL-Based Abuse Education and Safety Planning

Program for Women with Disabilities ......... 4-26

Rehabilitation Research and Training Center

 on Disability in Rural Communities ............. 1-4

Rehabilitation Research and Training Center

on Disability in Rural Communities .............. 1-5

Nebraska

Development of an Intelligently Controlled

Assistive Rehabilitation Elliptical (ICARE)

Training System to Promote Walking and

Fitness in Persons with Physical

Limitations .................................................. 2-80

Investigation of Interventions for Sitting

Postural Control in Young Children with

Moderate to Severe Cerebral Palsy ............. 2-82

Investigation of the Dynamics of

Development of Sitting Postural Control in

Infants with Cerebral Palsy ......................... 2-81

New Hampshire

Building Knowledge and Capacity in The

Rehabilitation and Recovery of AfricanAmericans Suffering from Severe Mental

Illness: The Dartmouth-Howard

Collaboration. ................................................ 9-8

Cognitive Training and Supported

Employment in Severe Mental Illness ......... 1-16

Fifteen-year Course of Competitive

Employment for People with Severe Mental

Illness .......................................................... 1-17

New Jersey

A Multicenter Prospective Randomized Controlled Trial of the Effectiveness of

Amantadine Hydrochloride in Promoting

Recovery of Function Following Severe

Traumatic Brain Injury ................................ 2-28

Advanced Psychiatric Rehabilitation

Research on Employment and Community

Integration ................................................... 9-29

Advanced Rehabilitation Research Training

Center on Neuro-musculoskeletal

Rehabilitation .............................................. 9-30

Improved Weight Bearing Evaluation of

Knee Osteoarthritis...................................... 3-48
C-8 Projects by State

JFK-Johnson Rehabilitation Institute TBI

Model System ............................................. 2-29

Northern New Jersey Spinal Cord Injury

System......................................................... 2-57

Northern New Jersey Traumatic Brain

Injury System (NNJTBIS) .......................... 2-30

Quality of Life in Traumatic Brain Injury

Research and Practice: Development of the

TBI-QOL .................................................... 2-83

Rehabilitation Engineering Research Center

on Children with Orthopedic Disabilities .... 3-15

New York

Advanced Rehabilitation Research and

Disability Policy Training Center ................ 9-32

Advanced Rehabilitation Research Training

Program....................................................... 9-31

Asset Accumulation and Economic SelfSufficiency (AAESS).................................. 4-18

Center for International Rehabilitation

Research Information and Exchange

(CIRRIE-2) ................................................... 7-5

Center on Knowledge Translation for

Technology Transfer ..................................... 7-6

Classification and Measurement of Medical

Rehabilitation Interventions......................... 2-32

Controlled Study of Affect Recognition

 Training for Individuals with Traumatic

Brain Injury ................................................. 4-27

Creating Audio-Tactile Illustrated Digital

Talking Books Using a Digital Pen-Based

Computing Platform .................................... 3-67

Demand-Side Employment Placement

Models ........................................................ 1-13

Diabetes Monitoring for Cognitively

Impaired Adults........................................... 3-68

Disability and Business Technical

Assistance Center - Northeast ....................... 8-4

Knowledge Athletes Platform: Capitalizing

on Online Communication to Increase

Participation and Learning for All

Students....................................................... 3-66

Mount Sinai Spinal Cord Injury Model

System......................................................... 2-58

New York Traumatic Brain Injury Model

System (NYTBIMS) ................................... 2-31

Rehabilitation Engineering and Research

 Center (RERC) on Universal Design and

the Built Environment at Buffalo ................ 3-17

Rehabilitation Engineering Research Center

on Technology Transfer (T2RERC)............ 3-16

Rehabilitation Research and Training Center

on Demographics and Statistics ..................... 5-4

Rehabilitation Research and Training Center

on Disability Statistics and Demographics .... 5-5

Rehabilitation Research and Training Center

on Employment Policy and Individuals with

Disabilities..................................................... 1-6

Rehabilitation Research and Training Center

on Employment Service Systems .................. 1-7

Rehabilitation Research and Training Center

on Traumatic Brain Injury Interventions ........ 2-9

Toward Equity: Innovative, Collaborative

Research on Interpreter Training, DBT, and

Psychological Testing .................................... 9-9

Using the U.S. Equal Employment

Opportunity Commission (EEOC)

Employment Discrimination Charge Data

System for Research and Dissemination

Purposes........................................................ 5-8

Web-based Student Processes at

Community Colleges – Tools for Ensuring

Accessibility ................................................ 3-49

North Carolina

A Social Networking System for Parents

and Professionals Working with Children

with Autism Spectrum Disorders ................ 3-69

Carolinas Traumatic Brain Injury

Rehabilitation and Research System

(CTBIRRS)................................................. 2-33

Consortium for Assistive Technology

Outcomes Research (CATOR) II ................ 3-30

Daily Living and Community Skills Video

Game for Children with Developmental

Disabilities................................................... 4-28

Improving Representative Payeeship for

People with Psychiatric Disabilities and

their Families............................................... 4-29

Micromachined Braille Reader.................... 3-50

Rehabilitation Engineering Research

Center for Communication Enhancement

(AAC-RERC) ............................................. 3-19
Projects by State C-9

Rehabilitation Engineering Research

Center on Communication Enhancement .... 3-18

TBI Model System Collaborative Study of

Amantadine for Post TBI Irritability and

Aggression .................................................. 2-34

Universal Design of Tactile Exhibits with

Touch Activated Descriptive Audio for

Aquariums................................................... 3-51

Ohio

Developing College Campuses as Transition

Settings for Students with Severe and

Multiple Disabilities Aged 18-21 ................ 4-32

Individualized Planning for the First Year

Following Acute Rehabilitation Project ...... 2-36

Northeast Ohio Regional Spinal Cord Injury

System......................................................... 2-59

Ohio Regional TBI Model System .............. 2-35

Rehabilitation Research and Training Center

on Substance Abuse, Disability, and

Employment .................................................. 1-8

Teen Online Problem Solving for Pediatric

Brain Injury ................................................. 4-30

Web Therapy to Improve Outcomes After

Traumatic Brain Injury in Young Children .. 4-31

Oregon

A Means of Expression: Online

Communication Assessment to Improve Outcomes for Individuals with Severe

Disabilities................................................... 3-52

Context Aware Self Management Tools for

Individuals with Significant Cognitive

 Disabilities.................................................. 4-37

Development of a Cognitive Behavioral

Group Therapy Intervention for Women

with Physical Activity Disabilities who

Experience Depression ................................ 2-84

Development of a Safety-Planning Tool for

Men with Disabilities .................................. 4-33

Health and Health Care Disparities Among

Individuals with Disabilities ........................ 2-37

My ScrivenerTMInnovative Technology to

Enhance Fine Motor Function ..................... 3-78

National Center for Accessible Public

Transportation ............................................. 3-20

Parent-Infant Interaction Project (PIIP) ....... 4-34

Rehabilitation Research and Training Center

for Community Integration for Individuals

with Disabilities, Strengthening Family and

Youth Participation in Child and Adolescent

Mental Health Services ............................... 4-12

Rehabilitation Research and Training Center

on Health and Wellness in Long Term

Disability ..................................................... 2-10

School Transition & re-Entry Program

(STEP): Systematic Hospital-to-School

Transition for Students with Traumatic Brain

Injury ........................................................... 4-19

Systematic Study of the Effectiveness of

AAC Intervention to Improve Conversation

in Individuals with Degenerative Language

Disorders..................................................... 3-53

Television Assisted Promotion (TAP):

Enhancing Rehabilitation Outcomes with

Familiar Technology ................................... 3-80

Why Go It Alone? The Use of Public

Resources to Enhance Computer

Accessibility for Individuals with Intellectual

Disabilities................................................... 3-79

Pennsylvania

Information Technology for Independence:

Community-Based Research ....................... 3-31

Low Vision Lime: Solution for Low Vision

Musicians to Read, Perform, Write, and Print

Music Notation ............................................ 3-82

Physical and Social Environmental Factors

that Influence Health and Participation

Outcomes for Chronically-Ill Adults ........... 9-20

Regional Spinal Cord Injury Center of the

Delaware Valley .......................................... 2-60

Rehabilitation Engineering Research Center

on Accessible Public Transportation ........... 3-23

Rehabilitation Engineering Research Center

on Spinal Cord Injury .................................. 3-22

Rehabilitation Engineering Research Center

on Telerehabilitation .................................... 3-21

Rehabilitation Research and Training Center

on Participation and Community Living of

Individuals with Psychiatric Disabilities...... 4-13

The Moss Traumatic Brain Injury Model

System......................................................... 2-38
C-10 Projects by State

Treatment Components and Active

Ingredients in a Scheduled Telephone

Intervention for Traumatic Brain Injury....... 2-87

Understanding the Determinants of Motor

Ability, Self-Care, and Play of Young

Children with Cerebral Palsy ...................... 2-88

Universal Access to Passenger Rail ............ 3-81

University of Pittsburgh Model Center on

Spinal Cord Injury ....................................... 2-61

Use of Functional Neuroimaging to Assess

the Status of the Attention Networks

Following Traumatic Brain Injury ............... 2-85

Virtual Reality Assessment and Treatment

of Hemispatial Neglect ................................ 2-89

Zolpidem and Restoration of

Consciousness: An Exploration of the Mechanism

of Action ..................................................... 2-86

South Carolina

A Longitudinal Study of Risk for

Hospitalization, Pressure Ulcers, and

Subsequent Injuries After Spinal Cord

Injury ........................................................... 2-90

Center on Health Outcomes Research and

Capacity Building for Underserved

Populations with SCI and TBI .................... 9-10

Participation, Subjective Well-Being,

Health, and Spinal Cord Injury: A 35-Year

Longitudinal Study ...................................... 2-91

Tennessee

Appropriate Directional Hearing Aid

Switching in School Age Children .............. 3-54

Texas

Advanced Rehabilitation Research

Training ....................................................... 9-34

Advanced Rehabilitation Research

Training ....................................................... 9-35

Development of an Internet-Based SelfEsteem Intervention for Women with Disabilities

4-36

Effectiveness of a Group CognitiveBehavioral Intervention for Depression

after TBI and Factors that Affect Response

to Treatment ................................................ 2-92

Impact of Prospective Payment and

Rehabilitation Outcomes ............................... 5-9

Interdisciplinary Rehabilitation Research

Training Program ........................................ 9-33

Minority Scholar/Champion Research

Training Project ........................................... 9-11

National Center for the Dissemination of

Disability Research (NCDDR) ..................... 7-8

North Texas Burn Rehabilitation Model

System (NTBRMS) .................................... 2-39

North Texas Traumatic Brain Injury Model

System (NT-TBIMS) .................................. 2-40

Outpatient Social Skills Training for

Distressed Adolescent Burn Survivors ........ 4-35

Pediatric Burn Injury Rehabilitation Model

System......................................................... 2-41

Rehabilitation and Training Center on

Community Integration of Persons with TBI4-14

Research Utilization Support and Help

(RUSH) Project ............................................. 7-7

SEDL’s Vocational Rehabilitation Service

Models for Individuals with Autism

Spectrum Disorders..................................... 1-14

Southwest Disability and Business

Technical Assistance Center (Southwest

DBTAC-Region VI) ..................................... 8-9

Texas Model Spinal Cord Injury System..... 2-62

The Texas Traumatic Brain Injury Model

System of TIRR .......................................... 2-42

Utah

Utility Arm and Upper Limb Prosthesis...... 3-70

Wireless EMG Preamp and Improved

Mounting System ........................................ 3-83

Virginia

A National Assessment of the Rates and

Correlates of Alcohol and Other Drug Use

by College Students with Disabilities .......... 5-10

Advanced Research Training Program........ 9-36

Disability and Business Technical

Assistance Centers: Coordination,

Outreach, and Research Center ..................... 7-9

Empowerment: Building Research

Infrastructure Capacity ................................ 9-13
Projects by State C-11

Medicaid Quality Indicators for Individuals

with Disabilities........................................... 2-43

Rehabilitation Research and Training

Center on Workplace Supports and Job

Retention ....................................................... 1-9

Virginia Commonwealth Traumatic Brain

Injury Model System ................................... 2-44

Vocational Rehabilitation Service Models for

Individuals with Autism Spectrum Disorders

(VCU ASC Career Links) .......................... 1-15

Washington

ACCESS: Assisted Cognition in

Community, Employment, and Support

Settings........................................................ 3-32

Assessing the Impact of Medicare-D on

SSDI Beneficiaries...................................... 5-11

Controlled Trial of Venlafaxine XR for

Depression After SCI: A Multisite Study ... 2-47

Disability and Business Technical

Assistance Center (DBTAC) —

 Northwest................................................... 8-13

Efficacy of Pressure Garment Therapy

After Burns ................................................. 2-93

Model Systems Knowledge Translation

Center (MSKTC) ........................................ 7-10

Multiple Sclerosis Rehabilitation Research

and Training Center ..................................... 2-11

Multiple Sclerosis Rehabilitation Research

and Training Center ..................................... 2-12

Northwest Regional Spinal Cord Injury

System......................................................... 2-63

Rehabilitation Research and Training Center

on Aging with a Physical Disability:

Reducing Secondary Conditions and

Enhancing Health and Participation,

Including Employment ................................ 2-13

Telephone and In-Person Cognitive

Behavioral Therapy for Depression After

Traumatic Brain Injury ................................ 2-94

The Effect of Scheduled Telephone

Intervention on Outcomes After Traumatic

Brain Injury (TBI) ....................................... 2-46

University of Washington Advanced

Rehabilitation Research Training ................ 9-37

University of Washington Burn Model

System......................................................... 2-45

University of Washington Burn Model

System......................................................... 2-48

University of Washington Traumatic

Brain Injury Model System ......................... 2-49

Wisconsin

Advanced Rehabilitation Research Training

in Pediatric Mobility .................................... 9-39

Adverse Outcomes Following Inpatient

Rehabilitation: Trends and Reasons ............ 2-95
Principal Investigators

Principal Investigators D-3

Abery, Brian, PhD

University of Minnesota

612/625-5592 ............................................... 2-26

Allen, David, PhD

Portland State University

503/725-4687 ............................................... 4-34

Altman, Barbara

301/460-5963 ............................................... 9-14

Apple, David F., Jr., MD

Shepherd Center, Inc.

404/350-7353 ............................................... 2-53

Bakke, Matthew H., PhD

Gallaudet University

202/651-5335 (V/TTY) ........................3-5, 3-36

Balcazar, Fabricio E., PhD

University of Illinois at Chicago

312/413-1646 ................................................. 9-6

Barner, Kenneth, PhD

University of Delaware

302/831-6937 ............................................... 3-34

Barrance, Peter, PhD

Kessler Medical Rehabilitation Research and

Education Center (KMRREC)

973/324-3550 ............................................... 3-48

Bauer, Steve, PhD

University at Buffalo; The State University of

New York

716/829-6760 ............................................... 3-16

Beer, Randall F., PhD

Rehabilitation Institute Research Corporation

312/238-1556; 312/238-3381 ....................... 2-72

Belknap, Katherine

ORC Macro

301/608-8998, ext. 105 ................................ 7-13

Bell, Kathleen R., MD

University of Washington

206/685-0935 ......................................2-46, 2-49

Bellini, James L., PhD

Syracuse University

315/443-9655 ............................................... 9-32

Bertocci, Gina, PhD

University of Michigan

734/936-1103 ............................................... 3-14

Bjelland, Melissa, PhD

Cornell University

607/255-9536 ................................................. 5-4

Blaedow, Karen

Custom Technology Ltd.

608/276-5516 ............................................... 3-71

Blanck, Peter D., PhD, JD

Syracuse University

315/443-9703 ........................................1-13, 8-6

Bodine, Cathy

University of Colorado

303/315-1281 ................................................. 3-4

Bogner, Jennifer, PhD

Ohio Valley Center for Brain Injury

Prevention and Rehabilitation

614/293-3830 ............................................... 2-35

Bombardier, Charles H., PhD

University of Washington

206/744-3665 ......................................2-47, 2-63

Boninger, Michael L., MD

University of Pittsburgh

412/365-4861 ............................................... 2-61

Brabyn, John A., PhD

The Smith-Kettlewell Eye Research

Institute

415/345-2110 ........................................3-3, 3-29

Braddock, David L., PhD

University of Colorado Health

Sciences Center

303/492-0639 ................................................. 5-6
D-4 Principal Investigators

Brienza, David M., PhD

University of Pittsburgh

412/586-6907 ...................................... 3-21, 3-22

Brooks, Marcia

WGBH Educational Foundation

617/300-3431 ............................................... 3-46

Brown, Allen W., MD

Mayo Clinic

507/255-3116 ............................................... 2-27

Brown, Susan H., PhD

University of Michigan

734/763-6755 ............................................... 2-76

Bruyère, Susanne, PhD

Cornell University

607/255-9536 (V);

607/255-2891

(TTY) .................................... 1-6, 3-49, 5-4, 5-8

Burkhauser, Richard, PhD

Cornell University

607/255-9536 (V); 607/255-

2891 (TTY) ............................................ 1-6, 5-4

Burnfield, Judith, PhD, PT

Madonna Rehabilitation

Hospital

402/483-9669 ............................................... 2-80

Bushnik, Tamara, PhD

Santa Clara Valley Medical

Center (SCVMC)

408/793-6446 ...................................... 2-16, 2-65

Buxbaum, Laurel, PsyD

Albert Einstein Healthcare

Network

215/456-5953 ............................................... 2-89

Cavenaugh, Brenda

Mississippi State University

662/325-3728 ............................................... 1-11

Charlifue, Susan, PhD

Craig Hospital

303/789-8220 ............................................... 2-51

Chen, David, MD

Rehabilitation Institute of Chicago

312/238-0764 ............................................... 2-54

Chen, Yuying, MD, PhD

University of Alabama/Birmingham

205/934-3320 ................................................. 7-3

Cherney, Leora R., PhD

Rehabilitation Institute Research

Corporation

312/238-1117 ...................................... 2-73, 3-40

Chiarello, Lisa A., PT, PhD

Drexel University

215/762-8805 ............................................... 2-88

Cicerone, Keith D., PhD

JFK Johnson Rehabilitation Institute

732/906-2640 ............................................... 2-29

Clark, Allison, PhD

Memorial Herman; The Institute for

Rehabilitation and Research (TIRR)

713/630-0519 ............................................... 2-92

Cook, Judith A., PhD

University of Illinois at Chicago

312/355-3921 ................................................. 9-3

Copeland, Jana, PhD

Meeting the Challenge, Inc.

719/444-0268 ............................................... 8-11

Corrigan, John D., PhD

Ohio State University

614/293-3830 ...................................... 2-35, 2-36

Coster, Wendy J., PhD

Boston University

617/353-7518 ............................................... 4-24
Principal Investigators D-5

Davies, Daniel K.

AbleLink Technologies, Inc.

719/592-0347 ............................ 3-61, 3-62, 3-72

de Jong, Jim

University of Missouri/Columbia

800/949-4232 (V/TTY, in IA,

KS, MO, and NE); 573/882-

3600 (V/TTY).............................................. 8-10

DeRuyter, Frank, PhD

Duke University

919/684-6271 ............................ 3-18, 3-19, 3-30

Dewald, Julius, PT, PhD

Northwestern University

312/908-6788 ............................................... 3-41

Diaz-Arrastia, Ramon R.,

MD, PhD

The University of Texas

Southwestern Medical Center

214/648-6409 ............................................... 2-40

Dikjers, Marcel, PhD

Mount Sinai School of Medicine

212/659-8587 ............................................... 2-32

Donovan, William, MD

The Institute for Rehabilitation

and Research (TIRR)

713/797-5023 ............................................... 2-62

Drake, Robert E. MD, PhD

Dartmouth Medical School

603/448-0263 ............................................... 1-17

Drum, Charles, PhD

Oregon Health and Science

University

503/494-8364 ......................................2-10, 2-37

Duggan, Colette, PhD

Wayne State University

313/745-1070 ............................................... 4-25

Dvorkin, Assaf Y., PhD

312/238-5828 ............................................... 9-16

Elbogen, Eric, PhD

Duke University

919/682-8394 ............................................... 4-29

Elovic, Elie P., MD

Kessler Medical Rehabilitation

Research and Education

Corporation (KMRREC)

973/243-6815 ............................................... 2-30

Engrav, Loren H., MD

University of Washington

206/731-3209 ............................ 2-45, 2-48, 2-93

Epps, Irvine E., EdD

Texas Southern University

713/313-7224 ............................................... 9-11

Esselman, Peter C., MD

University of Washington

206/731-3209 ............................................... 2-48

Falco, Ruth, PhD

Portland State University

503/725-4687 ............................................... 4-34

Fann, Jesse R., MD, MPH

University of Washington

206/685-4280 ............................................... 2-94

Farkas, Marianne, ScD

Boston University

617/353-3549 ..........................................4-9, 7-4

Fatone, Stefania, PhD, BPO

Northwestern University

312/238-6500 ............................................... 3-13

Fauerbach, James A., PhD

Johns Hopkins School of

Medicine

410/550-0894 ............................................... 2-24

Finlayson, Marcia, PhD

University of Illinois at Chicago

312/996-4603 ............................................... 2-74
D-6 Principal Investigators

Flexer, Robert, PhD

Kent State University

330/672-0584 ............................................... 4-32

Foulds, Richard A., PhD

New Jersey Institute of Technology

973/596-3335 ............................................... 3-15

Fox, Lynn

Life Technologies, LLC

503/725-3188 ............................................... 3-79

Franzon, Paul D.

North Carolina State University

919/515-7351 ............................................... 3-50

Freed, Geoff

WGBH Educational Foundation

617/300-3700 ...................................... 3-44, 3-45

Friedman, Robert, PhD

University of South Florida

813/974-4640 ................................................. 4-5

Fried-Oken, Melanie, PhD

Oregon Health and Science University

503/494-7587 ............................................... 3-53

Friesen, Barbara, PhD

Portland State University

503/725-4166 ............................................... 4-12

Fuller, Rebecca

RAF Models & Displays

336/722-4250 ............................................... 3-51

Gard, Steven, PhD

Northwestern University

312/238-6500 ............................................... 3-13

Gerber, Brian J. PhD

Louisiana State University

225/578-0238 ............................................... 4-16

Giacino, Joseph T., PhD

JFK Johnson Rehabilitation Institute

732/205-1461 ............................................... 2-28

Gill, Kenneth J., PhD

University of Medicine and Dentistry of New

Jersey

908/889-2438 ............................................... 9-29

Glang, Ann E., PhD

Western Oregon University

541/346-0594 ............................................... 4-19

Goodwin, Dianne

Blue Sky Designs, Inc.

888/724-7002; 612/724-7002;...................... 3-77

Gordon, Wayne A., PhD

Mount Sinai School of Medicine

212/659-9372 ........................................ 2-9, 2-31

Graves, Daniel, PhD

The Institute for Rehabilitation and

Research (TIRR)

713/797-5023 ............................................... 2-62

Grigal, Meg, PhD

University of Massachusetts Boston

617/590-8082 ............................................... 4-17

Groah, Suzanne L., MD

National Rehabilitation Hospital ;

MedStar Research Institute

202/877-1196 ........................................ 2-5, 2-52

Halliday, John

University of Massachusetts Boston

617/287-4336 ................................................. 1-3

Hammond, Flora M., MD

Carolinas HealthCare System

704/355-4330 ...................................... 2-33, 2-34

Hanks, Robin A., PhD

Wayne State University

313/745-9763 ...................................... 2-25, 2-79

Harbourne, Regina T., PT

University of Nebraska at Omaha

402/554-3247 ............................................... 2-81
Principal Investigators D-7

Harkins, Judy, PhD

University of Wisconsin/Madison

202/561-5257 (Gallaudet) ........................... 3-25

Harrington, Charlene, PhD, RN

University of California,

San Francisco

415/476-4030 ..........................................4-3, 4-4

Harris, Gerald F., PhD

Marquette University

414/288-0698 ......................................9-38, 9-39

Harrison, Oce, EdD

Adaptive Environments Center, Inc.

617/695-1225, ext. 227 .................................. 8-3

Harrison-Felix, Cynthia, PhD

Craig Hospital

303/789-8565 ............................................... 2-19

Hart, Debra, PhD

University of Massachusetts

Boston

617/590-8082 ............................................... 4-17

Hart, Tessa, PhD

Albert Einstein Healthcare

Network

215/663-6153 ......................................2-38, 2-87

Hassouneh, Dena, PhD

Oregon Health and Science

University

503/494-2714 ............................................... 2-84

Havey, Gary

Advanced Medical Electronics

Corporation

763/463-4814, x104 ..................................... 3-65

Heinemann, Allen W., PhD

Northwestern University;

Rehabilitation Institute Research

Corporation

312/238-2802 .............................. 2-21, 5-3, 9-24

Heitzman-Powell, Linda S., PhD

University of Kansas

913/321-3143 ............................................... 4-22

Heller, Tamar, PhD

University of Illinois at Chicago

312/413-1647 ................................................. 4-6

Herndon, David, MD

University of Texas Medical Branch

409/770-6731 ............................................... 2-41

Hibbard, Mary R., PhD

Mount Sinai School of Medicine

212/659-9374 ............................................... 9-31

Hornby, T. George, PhD, PT

Rehabilitation Institute of Chicago

312/238-1397 ............................................... 2-71

Hotz, Gillian A., PhD

University of Miami

305/243-4004 ............................................... 2-67

Huang, He, PhD

312/238-2084 ............................................... 9-17

Hughes, Rosemary, PhD

University of Montana

406/243-2898 ............................................... 4-26

Hunter, David J., MD, PhD

Boston University

617/638-5180 ............................................... 2-75

Hunter-Zaworski, Katharine, PhD

Oregon State University

800/916-0099 ............................................... 3-20

Hurdich, Jason

Vcom3D, Inc.

407/737-7310 ......................................3-63, 3-73

Iglehart, Frank, PhD

Clarke School for the Deaf

413/584-3450 ............................................... 3-47
D-8 Principal Investigators

Jackson, Amie B., MD

University of Alabama/

Birmingham

205/934-3330 ............................................... 2-50

Jensen, Mark P. PhD

University of Washington

206/543-3185 ............................................... 2-13

Jette, Alan M., PhD

Boston University Medical

Campus

617/638-1985 ............................................... 9-25

Johnson, Kurt PhD

University of Washington

206/543-3677 ............................ 3-32, 7-10, 9-37

Johnston, Mark, PhD

University of Wisconsin/

Milwaukee

414/229-3616 ............................................... 2-95

Jones, Erica C., MPH

Public Health Institute

510/285-5600 (V/TTY) .............................. 8-12

Jones, Michael L., PhD

Shepherd Center, Inc.

404/350-7595 ............................................... 2-70

Jones, Robin A.

University of Illinois at Chicago

312/996-1059 ................................................. 8-7

Kalpakjian, Claire PhD

University of Michigan

734/763-0971 ............................................... 2-78

Kaplan, Shelley

Syracuse University

404/541-9001 (Kaplan) ................................. 8-6

Karg, Patricia, MS

University of Michigan

734/936-1103 ............................................... 3-14

Kartin, Deborah, PT PhD

University of Washington

206/598-5338 ............................................... 9-37

Katz, Harry, PhD

Cornell University

607/255-9536 ................................................. 5-4

Keating, Thomas, PhD

Assistech Systems, LLC

541/342-3763 ............................................... 4-37

Kemp, Bryan J., PhD

Los Amigos Research &

Education Institute, Inc.

562/401-7402 ................................................. 2-4

Kennedy, James J., PhD

Washington State University

509/368-6971 ............................................... 5-11

Kielhofner, Gary, PhD

University of Illinois at Chicago

312/996-4973 ............................................... 9-23

Kirshbaum, Megan, PhD

Through the Looking Glass

510/848-1112 (V) ........................................ 4-15

Kowalske, Karen

The University of Texas

Southwestern Medical Center

214/648-2288 ............................................... 2-39

Kraft, George H., MD

University of Washington

206/543-7272 ...................................... 2-11, 2-12

Krause, James S., PhD

Medical University of South

Carolina

843/792-1337 ............................ 2-90, 2-91, 9-10

Kreutzer, Jeffrey S., PhD

Virginia Commonwealth

University

804/828-9055 ...................................... 9-36, 2-44
Principal Investigators D-9

Lakin, Charlie, PhD

University of Minnesota

612/624-5005 ........................................ 4-11, 5-7

Lammertse, Daniel P., MD

Craig Hospital

303/789-8220 ............................................... 2-51

Landau, Steven

Touch Graphics, Inc.

800/884-2440 ............................................... 3-67

Lane, Joseph

University at Buffalo; The State

University of New York

716/829-3266 ................................................. 7-6

Lawson, William, MD, PhD

Dartmouth College

202/865-6611 ................................................. 9-8

Lemoncello, Richard

Life Technologies, LLC

541/915-8472 ............................................... 3-80

Lesley M. Hudson

Shepherd Center, Inc.

404/350-7353 ............................................... 2-53

Lewis, Allen, PhD

Virginia Commonwealth University

804/827-0914 ............................................... 9-13

Lezotte, Dennis C., PhD

University of Colorado Health

Sciences Center

303/315-6873 ............................................... 2-17

Liu, Xue-Cheng, PhD

Medical College of Wisconsin

414/337-7323 ......................................3-56, 3-57

Lueking, Richard G., PhD

TransCen, Inc.

301/424-2002 ................................................. 8-5

Maguire, Amy

The Sandbox Learning Company

800/704-7815 ......................................3-69, 4-28

Mahshie, James

Gallaudet Universitiy

202/651-5329 ................................................. 3-6

Marino, Ralph, MD

Thomas Jefferson University

215/955-6579 ............................................... 2-60

Matrone, Kathe, PhD

University of Washington

425/771-7436 ............................................... 8-13

May, Michael

Sendero Group, LLC

530/757-6800 ............................................... 3-33

McCann, William

Dancing Dots Braille Music

Technology, L.P.

610/783-6692 ............................................... 3-82

McDonald, Craig, MD

University of California, Davis

530/752-3447 ................................................. 2-3

McGurk, Susan, PhD

Dartmouth College

603/271-5747 ............................................... 1-16

McMahon. Brian T. PhD

Virginia Commonwealth University

804/827-0917 ................................................. 7-9

Milchus, Karen

Georgia Institute of Technology;

Center for Assistive Technology and

Environmental Access (CATEA)

404/894-0393 ........................................3-9, 3-39

Miller, Dave

Knowledge Athletes, Inc.

585/330-3051 ............................................... 3-66
D-10 Principal Investigators

Mitchell, Helena, PhD

Georgia Institute of Technology

404/367-1288 ................................................. 3-8

Moore, Dennis C., EdD

Wright State University

937/775-1484 (V/TTY) ................................ 1-8

Morris, Michael

Syracuse University

202/296-2046 ............................................... 4-18

Mullick, Abir

Georgia Tech Research Corporation

404/385-7210 ............................................... 3-38

Munson, Leslie J., PhD

Portland State University

503/725-4687 ............................................... 4-34

Nash, Mark S., PhD

University of Miami

305/243-3628 ............................................... 2-68

Nemunaitis, Gregory A., MD

MetroHealth System

216/778-5514 ............................................... 2-59

Nicholson, Joanne, PhD

Joanne Nicholson, PhD

508/856-8712 ............................................... 9-15

Nosek, Margaret A., PhD

Baylor College of Medicine

713/523-0909 ............................................... 4-36

Novack, Thomas A., PhD

University of Alabama/Birmingham

205/934-3283 ............................................... 2-15

Odum, Mark X.

HeiTech Services, Inc.

800/346-2742 (V); 301/459-5984

 (TTY); 301/459-5900 (V) ........................... 7-12

O’Neill, John, PhD

Hunter College of CUNY

212/772-5188 .......................................... 1-7, 5-5

Oschwald, Mary, PhD

Portland State University

503/725-9602 ............................................... 4-33

Ottenbacher, Kenneth J., PhD

University of Texas Medical Branch

409/747-1637 ........................................ 5-9, 9-33

Palfrey, Judith S., MD

Children’s Hospital

617/355-4661 ............................................... 4-10

Palsbo, Susan E., PhD

George Mason University

541/505-7591 ............................................... 2-43

Palsbo, Susan E. PhD

Obslap, Inc.

541/505-7591 ............................................... 3-78

Park, Hyung Soon, PhD

Hyung Soon Park, PhD

312/238-1425 ............................................... 9-13

Parker, Jerry C., PhD

University of Missouri/Columbia

573/884-1499 ........................................ 2-8, 9-28

Parmanto, Bambang, PhD

University of Pittsburgh

412/383-6649 ............................................... 3-31

Perry, Jennifer L.

University of Texas Medical Branch

409/770-6718 ............................................... 4-35

Pollard, Robert, PhD

University of Rochester

585/275-3544 ................................................. 9-9

Preston, Paul, PhD

Through the Looking Glass

510/848-1112 (V) ........................................ 4-15

Prvu-Bettger, Janet A., ScD

Janet A. Prvu-Bettger, ScD

617/901-0277 ............................................... 9-20
Principal Investigators D-11

Ragnarsson, Kristian T., MD

Mount Sinai School of

Medicine

212/659-8587 ............................................... 2-58

Razzano, Lisa A., PhD

University of Illinois at Chicago

312/422-8180, ext. 20 .................................. 4-21

Ren, Yupeng

RehabTek, LLC

847/024-1659 ............................................... 3-74

Requejo, Philip, PhD

University of Southern California

323/442-2903 ............................................... 2-14

Ricketts, Todd A., PhD

Vanderbilt University

School of Medicine

615/936-5258 ............................................... 3-54

Rimmer, James H., PhD

University of Illinois at Chicago

312/413-9651 ...................................... 2-22, 3-11

Rintala, Diana H., PhD

Baylor College of Medicine

713/664-1996 ............................................... 9-34

Ristova-Trendov, Daniela, MD

Wayne State University

313/745-1070 ............................................... 4-25

Rogers, E. Sally, PhD

Boston University

617/353-3549 ..................... 3-12, 4-9, 4-23, 9-26

Roth, Elliot J., MD

Rehabilitation Institute

Research Corporation

312/238-4637 ................................ 2-6, 2-7, 2-23

Rowland, Charity, PhD

Oregon Health and Science

University

503/494-2263 ............................................... 3-52

Rowland, Jennifer

University of Illinois at Chicago

312/413-1850 ............................................... 3-42

Ruiz-Quintanilla, S. Antonio

Cornell University

607/255-2132 ................................................. 8-4

Russinova, Zlatka, PhD

Boston University

617/353-3549 ......................................3-12, 9-26

Rust, Kathy, MS

University of Wisconsin/Milwaukee

414/229-5625 ............................................... 3-55

Rymer, W. Zev, MD, PhD

Northwestern University

312/238-6051 ............................................... 9-22

Salzer, Mark, PhD

University of Pennsylvania

215/349-8483 ............................................... 4-13

Samuel, Preethy, PhD

313/577-8562 ............................................... 9-19

Sander, Angelle M., PhD

The Institute for Rehabilitation and

Research (TIRR)

713/383-5644 ............................................... 4-14

Schlosser, Ralf W., PhD

Northeastern University

617/373-3785 ............................................... 7-11

Schluter, Edward

Medgraph, Inc.

585/453-9437 ............................................... 3-68

Schneider, Lawrence W., PhD

University of Michigan

734/936-1103 ............................................... 3-14

Sears, Andrew, PhD

UMBC

410/455-3883 ............................................... 3-43
D-12 Principal Investigators

Sears, Harold

Motion Control, Inc.

801/326-3434 ...................................... 3-70, 3-83

Seekins, Tom, PhD

University of Montana

406/243-2654 .......................................... 1-4, 1-5

Seel, Ronald T., PhD

Shepherd Center

404/367-1240 ...................................... 2-69, 4-20

Seifert, Greg

Advanced Medical Electronics

Corporation

763/463-4814 ............................................... 3-76

Sheffield, Ellyn, PhD

National Public Radio

202/513-2484 ............................................... 3-37

Shem, Kazuko, MD

Santa Clara Valley Medical Center

(SCVMC)

408/885-7007 ............................................... 2-66

Sherer, Mark, PhD

The Institute for Rehabilitation and

Research (TIRR)

713/799-7007 ............................................... 2-42

Sisto, Sue Ann, PT, PhD

University of Medicine and Dentistry

of New Jersey/New Jersey Medical

School (UMDNJ/NJMS) and; Kessler

Medical Rehabilitation Research and

Education Center (KMRREC)

973/243-6888 ............................................... 9-30

Smith, Peter A, MD

Marquette University

414/288-0696 ............................................... 2-96

Smith, Roger O., PhD

University of Wisconsin/Milwaukee

414/229-5625 ............................................... 3-55

Sprigle, Stephen, PhD, PT

Georgia Institute of Technology

404/894-4960 ........................................ 3-7, 3-10

Stapleton, David, PhD

Cornell University

607/255-9536 (V); 607/255-

2891 (TTY) ................................................... 1-6

Starling, Mike

National Public Radio

202/513-2484 ...................................... 3-35, 3-37

Steinfeld, Aaron, PhD

Carnegie Mellon University

412/268-6346 ............................................... 3-23

Steinfeld, Edward, ArchD

University at Buffalo; The State

University of New York

716/829-3485 ............................................... 3-17

Stergiou, Nicholas

University of Nebraska at Omaha

402/554-3247 ...................................... 2-81, 2-82

Stock, Steven E.

AbleLink Technologies, Inc.

719/592-0347 ............................ 3-58, 3-59, 3-60

Stone, John, PhD

University at Buffalo; The State

University of New York

716/829-3141, ext. 125 .................................. 7-5

Story, Molly Follette, PhD

Marquette University

707/578- ....................................................... 3-28

Struchen, Margaret, PhD

Memorial Herman; The Institute

for Rehabilitation and

Research (TIRR)

713/630-0515 ...................................... 2-92, 4-14

Stuberg, Wayne A, PhD, PT

University of Nebraska at Omaha

402/554-3247 ............................................... 2-81
Principal Investigators D-13

Sullivan-Soydan, Anne P., ScD

Anne P. Sullivan-Soydan, ScD

978/266-9567 ............................................... 9-18

Sutter, Stephen M.

CreateAbility Concepts, Inc.

317/484-8400 ......................................3-64, 3-75

Tan, Faye C., MD

Baylor College of Medicine

713/873-3875 ............................................... 9-35

Tate, Denise G., PhD

University of Michigan

734/763-0971 ......................................2-56, 9-27

Tomita, Machiko, PhD

University at Buffalo; The State

University of New York

716/829-2300 ............................................... 4-27

Tulsky, David S., PhD

Kessler Medical Rehabilitation

Research and Education Corporation

(KMRREC)

973/243-6849; 973/243-6916 ..............2-57, 2-83

Turnbull, Ann, EdD

University of Kansas

785/864-7600 ................................................. 4-7

Turnbull, H.R., LLM

University of Kansas

785/864-7600 ................................................. 4-7

Uswatte, Gitendra, PhD

University of Alabama

205/975-5089 ............................................... 2-64

van Roosmalen, Linda, PhD

Marshall Elevator Company

412/431-1340 ............................................... 3-81

Vanderheiden, Gregg C., PhD

University of Wisconsin/Madison

608/263-5788 ............................ 3-24, 3-25, 3-27

Wade, Shari L., PhD

Children’s Hospital Medical Center

513/636-7480 ......................................4-31, 4-30

Warschausky, Seth A., PhD

University of Michigan

734/936-7052 ............................................... 2-77

Watson, Douglas, PhD

University of Arkansas

501/686-9691 ............................................... 1-10

Wehman, Paul, PhD

Virginia Commonwealth University

804/828-1851 (V); 804/828-2494

(TTY) ....................................................1-9, 1-15

West, Steven L., PhD, CRC

Virginia Commonwealth University

804/827-0921 ............................................... 5-10

Westbrook, John, PhD

SEDL

512/476-6861 ................................ 1-14, 7-7, 7-8

White, Glen W., PhD

The University of Kansas

785/864-4095 ................................................. 4-8

Whiteneck, Gale G., PhD

Craig Hospital

303/789-8204 ......................................2-18, 2-20

Whitley, Rob PhD

Dartmouth College

603/448-0263 ................................................. 9-8

Projects by Program Type

E- 3 Projects by Program Type

Rehabilitation Research and Training Centers

Missouri Arthritis Rehabilitation Research

and Training Center (MARRTC)

 (H133B031120) ........................................... 2-8

Multiple Sclerosis Rehabilitation Research

and Training Center (H133B031129) ......... 2-11

Multiple Sclerosis Rehabilitation Research

and Training Center (H133B080025) ........ 2-12

Opening Doors for Children with

Disabilities and Special Health Care Needs

(H133B060012) .......................................... 4-10

Personal Assistance Services (PAS) in the

21st Century (H133B080002) ...................... 4-4

Rehabilitation and Training Center on

Community Integration of Persons with TBI

(H133B031117) .......................................... 4-14

Rehabilitation Research and Training

Center for Children’s Mental Health

(H133B040024) ............................................ 4-5

Rehabilitation Research and Training

Center for Community Integration for

Individuals with Disabilities, Strengthening

Family and Youth Participation in Child and

Adolescent Mental Health Services

(H133B040038) .......................................... 4-12

Rehabilitation Research and Training

Center for Community Living and

Employment for Individuals with

Intellectual and Developmental Disabilities

(H133B080005) .......................................... 4-11

Rehabilitation Research and Training

Center for Health and Function Across the

Lifespan of Individuals with Intellectual and

Developmental Disabilities (H133B080009) 4-6

Rehabilitation Research and Training

Center for Recovery and Recovery Oriented

Psychiatric Rehabilitation for Persons with

Long-Term Mental Illness (H133B040026) . 4-9

Rehabilitation Research and Training

Center for Vocational Rehabilitation

Research (H133B070001) ........................... 1-3

Rehabilitation Research and Training

Center in Neuromuscular Diseases (RRTC/

NMD) (H133B031118) ................................ 2-3

Rehabilitation Research and Training Center

on Aging with a Physical Disability:

Reducing Secondary Conditions and

Enhancing Health and Participation,

Including Employment (H133B080024) .... 2-13

Rehabilitation Research and Training

Center on Aging-Related Changes in

Impairment for Persons Living with Physical

Disabilities (H133B031002) ........................ 2-4

Rehabilitation Research and Training

Center on Demographics and Statistics

(H133B031111)............................................. 5-4

Rehabilitation Research and Training

Center on Disability in Rural Communities

(H133B030501) ............................................ 1-4

Rehabilitation Research and Training

Center on Disability in Rural Communities

(H133B080023) ............................................ 1-5

Rehabilitation Research and Training

Center on Disability Statistics and Demographics

(H133B080012) ............................................ 5-5

Rehabilitation Research and Training

Center on Employment Policy and

Individuals with Disabilities

(H133B040013) ............................................ 1-6

Rehabilitation Research and Training

Center on Employment Service Systems

(H133B040014) ............................................ 1-7

Rehabilitation Research and Training

Center on Enhancing the Functional and

Employment Outcomes of Individuals Who

Experience a Stroke (H133B080031) .......... 2-7

Rehabilitation Research and Training

Center on Health and Wellness in Long

Term Disability (H133B040034) ............... 2-10

Rehabilitation Research and Training Center

on Measurement and Interdependence in

Community Living (RRTC/MICL)

(H133B060018) ............................................ 4-8

Rehabilitation Research and Training Center

on Measuring Rehabilitation Outcomes and

Effectiveness (H133B040032) ..................... 5-3

Rehabilitation Research and Training Center

on Participation and Community Living of

Individuals with Psychiatric Disabilities

(H133B080029) .......................................... 4-13

Rehabilitation Research and Training Center

on Personal Assistance Services

(H133B031102) ............................................ 4-3
E-4 Projects by Program Type

Rehabilitation Research and Training

Center on Policies Affecting Families of

Children with Disabilities (H133B031133) .. 4-7

Rehabilitation Research and Training

Center on Spinal Cord Injury: Promoting

Health and Preventing Complications

through Exercise (H133B031114) ................ 2-5

Rehabilitation Research and Training

Center on Substance Abuse, Disability, and

Employment (H133B040012) ...................... 1-8

Rehabilitation Research and Training

Center on Technology Promoting

Integration for Stroke Survivors:

Overcoming Social Barriers

(H133B031127) ............................................ 2-6

Rehabilitation Research and Training

Center on Traumatic Brain Injury

Interventions (H133B040033) ..................... 2-9

Rehabilitation Research and Training

Center on Workplace Supports and Job

Retention (H133B040011) ........................... 1-9

University of Illinois at Chicago National

Research and Training Center on

Psychiatric Disability (H133B050003) ........ 9-3

Rehabilitation Engineering Research Centers

(RERCs)

National Center for Accessible Public

Transportation (H133E030009) ................. 3-20

Rehabilitation Engineering and Research

Center (RERC) on Universal Design and

the Built Environment at Buffalo

(H133E050004) .......................................... 3-17

Rehabilitation Engineering Research

Center for Communication Enhancement

(AAC-RERC) (H133E080011) ................. 3-19

Rehabilitation Engineering Research

Center for Successful Aging with Disability:

Optimizing Participation Through

Technology (OPTT-RERC)

(H133E080024) .......................................... 2-14

Rehabilitation Engineering Research

Center for the Advancement of Cognitive

Technologies (RERC-ACT)

(H133E040019) ............................................ 3-4

Rehabilitation Engineering Research

Center for Universal Interface and

Information Technology Access

(H133E080022) .......................................... 3-27

Rehabilitation Engineering Research

Center for Wheeled Mobility in Everyday

Life (H133E080003) .................................. 3-10

Rehabilitation Engineering Research Center

for Wireless Technologies (H133E060061) . 3-8

Rehabilitation Engineering Research

Center on Accessible Medical

Instrumentation (H133E020729)................ 3-28

Rehabilitation Engineering Research

Center on Accessible Public Transportation

(H133E080019) .......................................... 3-23

Rehabilitation Engineering Research

Center on Children with Orthopedic Disabilities

(H133E050011) .......................................... 3-15

Rehabilitation Engineering Research

Center on Communication Enhancement

(H133E030018) .......................................... 3-18

Rehabilitation Engineering Research

Center on Hearing Enhancement

(H133E030006) ............................................ 3-5

Rehabilitation Engineering Research

Center on Hearing Enhancement

(H133E080006) ............................................ 3-6

Rehabilitation Engineering Research

Center on Prosthetics and Orthotics

(H133E080009) .......................................... 3-13

Rehabilitation Engineering Research

Center on Recreational Technologies and

Exercise Physiology Benefiting Persons

with Disabilities (RERC RecTech)

(H133E070029) .......................................... 3-11

Rehabilitation Engineering Research

Center on Spinal Cord Injury

(H133E070024) .......................................... 3-22

Rehabilitation Engineering Research

Center on Technology Transfer (T2RERC)

(H133E030025) .......................................... 3-16

Rehabilitation Engineering Research

Center on Telecommunication Access

(H133E040013) .......................................... 3-25

Rehabilitation Engineering Research

Center on Telerehabilitation (H133E040012) 3-

21

Rehabilitation Engineering Research

Center on Universal Interface and
E- 5 Projects by Program Type

Information Technology Access

(H133E030012) .......................................... 3-24

Rehabilitation Engineering Research

Center on Wheelchair Transportation Safety

(H133E060064) .......................................... 3-14

Rehabilitation Engineering Research

Center on Wheeled Mobility

(H133E030035) ............................................ 3-7

Rehabilitation Engineering Research

Center on Workplace Accommodations

(H133E070026) ............................................ 3-9

Rehabilitation Engineering Research Center:

Develop and Evaluate Technology for Low

Vision, Blindness, and Multi-Sensory Loss

(H133E060001) ............................................ 3-3

Rehabilitation Robotics and

Telemanipulation Machines Assisting

Recovery from Stroke Rehabilitation

Engineering Research Center (MARSRERC) (H133E070013) ............................ 3-12

Disability and Rehabilitation Research

Projects

ACCESS: Assisted Cognition in

Community, Employment, and Support

Settings (H133A031739) ........................... 3-32

Asset Accumulation and Economic SelfSufficiency (AAESS) (H133A080014) ..... 4-18

Building Knowledge and Capacity in the

Rehabilitation and Recovery of AfricanAmericans Suffering from Severe Mental

Illness: The Dartmouth-Howard

Collaboration. (H133A080063) ................... 9-8

Building Research Capacity Through

Collaboration among American Indian

Tribes in Connecticut and Rhode Island

(H133A031706) ............................................ 9-5

Center for International Rehabilitation

Research Information and Exchange

(CIRRIE-2) (H133A050008) ....................... 7-5

Center for Strategic Capacity Building on

Minorities with Disabilities Research

(H133A040007) ............................................ 9-6

Center on Health Outcomes Research and

Capacity Building for Underserved

Populations with SCI and TBI

(H133A080064) .......................................... 9-10

Center on Knowledge Translation for

Technology Transfer (H133A080050) ......... 7-6

A Center on Postsecondary Education for

Students with Intellectual Disabilities

(H133A080042) .......................................... 4-17

Classification and Measurement of Medical

Rehabilitation Interventions

(H133A080053) .......................................... 2-32

Collaborative Spinal Cord Injury Model

Systems Centers Program: Improving

Spinal Cord Injury Rehabilitation Outcomes

(H133A060103) .......................................... 2-18

Consortium for Assistive Technology

Outcomes Research (CATOR) II

(H133A060062) .......................................... 3-30

Controlled Trial of Venlafaxine XR for

Depression After SCI: A Multisite Study

(H133A060107) .......................................... 2-47

Demand-Side Employment Placement

Models (H133A060033) ............................ 1-13

Disability and Business Technical

Assistance Centers: Coordination,

Outreach, and Research Center

(H133A060087) ............................................ 7-9

The Effect of Scheduled Telephone

Intervention on Outcomes After Traumatic

Brain Injury (TBI) (H133A040004) .......... 2-46

Empowerment: Building Research

Infrastructure Capacity (H133A080060) .... 9-13

Evacuation Methodology and

Understanding Behavior of Persons with

Disabilities in Disasters: A Blueprint for

Emergency Planning Solutions

(H133A080069) .......................................... 4-16

Fundamental Issues in Wayfinding

Technologies (H133A060056) ................... 3-29

Health and Health Care Disparities

Among Individuals with Disabilities

(H133A080031) .......................................... 2-37

Health Care Coordination for Individuals

with Physical Disabilities: Critical Elements

and Consumer Outcomes

(H133A080049) .......................................... 2-26

Health Services Research DRRP on Medical

Rehabilitation (H133A030807).................. 2-21

Improve the Employment Outcomes for the

Low Functioning Deaf (LFD) Population
E-6 Projects by Program Type

(H133A060044) .......................................... 1-10

Individualized Planning for the First Year

Following Acute Rehabilitation Project

(H133A080023) .......................................... 2-36

Information Technology for Independence:

Community-Based Research

(H133A021916) .......................................... 3-31

Innovative Knowledge Dissemination and

Utilization for Disability and Professional

Organizations and Stakeholders

(H133A050006) ............................................ 7-4

Medicaid Quality Indicators for Individuals

with Disabilities (H133A040016) .............. 2-43

Minority Scholar/Champion Research

Training Project (H133A031704) .............. 9-11

Model Systems Knowledge Translation

Center (MSKTC) (H133A060070) ............ 7-10

A Multicenter Prospective Randomized

Controlled Trial of the Effectiveness of

Amantadine Hydrochloride in Promoting

Recovery of Function Following Severe

Traumatic Brain Injury (H133A031713).... 2-28

National Center for Parents with Disabilities

and Their Families (H133A080034) .......... 4-15

National Center for the Dissemination of

Disability Research (NCDDR)

(H133A060028) ............................................ 7-8

National Spinal Cord Injury Statistical

Center (NSCISC) (H133A060039) ............. 7-3

Reducing Obesity and Obesity-Related

Secondary Conditions in Adolescents with

Disabilities (H133A060066) ...................... 2-22

Research Utilization Support and Help

(RUSH) Project (H133A031402) ................ 7-7

School Transition & re-Entry Program

(STEP): Systematic Hospital-to-School

Transition for Students with Traumatic

Brain Injury (H133A060075) .................... 4-19

SEDL’s Vocational Rehabilitation Service

Models for Individuals with Autism

Spectrum Disorders (H133A080007) ........ 1-14

Toward Equity: Innovative, Collaborative

Research on Interpreter Training, DBT, and

Psychological Testing (H133A031105) ....... 9-9

Vocational Rehabilitation Service Models

for Individuals with Autism Spectrum

Disorders (VCU ASC Career Links)

(H133A080027) .......................................... 1-15

Vocational Rehabilitation: Transition

Services that Lead to Competitive

Employment Outcomes for Transition-Age

Individuals with Blindness or Other Visual

Impairments (H133A070001) .................... 1-11

Model Burn Injury Systems

Johns Hopkins University Burn Injury

Rehabilitation Model System

(JHU-BIRMS) (H133A070045) ................ 2-24

North Texas Burn Rehabilitation Model

System (NTBRMS) (H133A070024) ........ 2-39

Pediatric Burn Injury Rehabilitation Model

System (H133A070026) ............................ 2-41

UCHSC Burn Model System Data

Coordination Center (BMS/DCC)

(H133A070006) .......................................... 2-17

University of Washington Burn Model

System (H133A020103) ............................ 2-45

University of Washington Burn Model

System (H133A070047) ............................ 2-48

Model Spinal Cord Injury Systems

Georgia Regional Spinal Cord Injury Care

System (H133N060009) ............................ 2-53

Midwest Regional Spinal Cord Injury Care

System (MRSCIS) (H133N060014) .......... 2-54

Mount Sinai Spinal Cord Injury Model

System (H133N060027) ............................ 2-58

National Capital Spinal Cord Injury Model

System (H133N060028) ............................ 2-52

The New England Regional Spinal Cord

Injury Center (H133N060024) ................... 2-55

Northeast Ohio Regional Spinal Cord Injury

System (H133N060017) ............................ 2-59

Northern New Jersey Spinal Cord Injury

System (H133N060022) ............................ 2-57

Northwest Regional Spinal Cord Injury

System (H133N060033) ............................ 2-63

Regional Spinal Cord Injury Center of the

Delaware Valley (H133N060011).............. 2-60

Texas Model Spinal Cord Injury System

(H133N060003) .......................................... 2-62

The Rocky Mountain Regional Spinal

Injury System (H133N060005) .................. 2-51

UAB Model Spinal Cord Injury Care

System (H133N060021) ............................ 2-50
E- 7 Projects by Program Type

University of Michigan Model Spinal Cord

Injury Care System (H133N060032) ......... 2-56

University of Pittsburgh Model Center on

Spinal Cord Injury (H133N060019) .......... 2-61

Model Traumatic Brain Injury Systems

Carolinas Traumatic Brain Injury

Rehabilitation and Research System

(CTBIRRS) (H133A070042) .................... 2-33

JFK-Johnson Rehabilitation Institute TBI

Model System (H133A070030) ................. 2-29

Mayo Clinic Traumatic Brain Injury Model

System (H133A070013) ............................ 2-27

Michigan Traumatic Brain Injury Model

System (SEMTBIS) (H133A080044) ........ 2-25

Midwest Regional Traumatic Brain Injury

Model System: Innovative Approaches to

Improve Cognition, Function, and

Community Living (H133A080045) ......... 2-23

The Moss Traumatic Brain Injury Model

System (H133A070040) ............................ 2-38

The National Data and Statistical Center for

the Traumatic Brain Injury Model Systems

(H133A060038) .......................................... 2-19

New York Traumatic Brain Injury Model

System (NYTBIMS) (H133A070033) ...... 2-31

North Texas Traumatic Brain Injury Model

System (NT-TBIMS) (H133A070027) ...... 2-40

Northern California Traumatic Brain Injury

Model System of Care (H133A070038) .... 2-16

Northern New Jersey Traumatic Brain

Injury System (NNJTBIS)

(H133A070037) .......................................... 2-30

Ohio Regional TBI Model System

(H133A070029) .......................................... 2-35

The Rocky Mountain Regional Brain Injury

System (RMRBIS) (H133A070022) ......... 2-20

TBI Model System Collaborative Study of

Amantadine for Post TBI Irritability and

Aggression (H133A080035)...................... 2-34

The Texas Traumatic Brain Injury Model

System of TIRR (H133A070043) .............. 2-42

University of Alabama at Birmingham

(UAB) Traumatic Brain Injury Model

System (UAB TBIMS) (H133A070039) ... 2-15

University of Washington Traumatic Brain

Injury Model System (H133A070032) ...... 2-49

Virginia Commonwealth Traumatic Brain

Injury Model System (H133A070036) ...... 2-44

Field Initiated Projects (FIPs)

Access to Locally Televised On-Screen

Information: Auditory Messaging and

Captions During Emergency Broadcasts

(H133G050278) .......................................... 3-44

Accessible Digital Radio Broadcast Services

(H133G060187) .......................................... 3-35

Accessible Location Information Delivered

via GPS Cell Phone for People with Visual

Impairments (H133G060035) .................... 3-33

Adapted Assessment of Speed of

Information Processing in Children with

Cerebral Palsy (H133G070044) ................. 2-77

Adverse Outcomes Following Inpatient

Rehabilitation: Trends and Reasons

(H133G060218) .......................................... 2-95

Appropriate Directional Hearing Aid

Switching in School Age Children

(H133G060012) .......................................... 3-54

Assessing Safety Risk after Traumatic Brain

Injury (H133G080153) .............................. 4-20

Assessing the Impact of Medicare-D on

SSDI Beneficiaries (H133G070055) ......... 5-11

Augmenting Language Therapy for

Aphasia: A Randomized Double-Blind

Placebo-Controlled Trial of Levodopa in

Combination with Speech-Language

Therapy (H133G070074) .......................... 2-73

An Automatic Fitting Algorithm for

Cochlear Implant (H133G060065) ............ 3-36

Biopsychosocial Factors that Predict TBI

Post-Acute Rehabilitation Outcomes

(H133G070171) .......................................... 2-69

Caption Accuracy Metrics Development

Project (H133G080093)............................. 3-46

Captioning Solutions for Handheld Media

and Mobile Devices Development

(H133G070122) .......................................... 3-45

CIL-Based Abuse Education and Safety

Planning Program for Women with

Disabilities (H133G070196) ...................... 4-26

Clinical Reliability and Validity of a Foot Model:

Assessing Efficacy and Functional
E-8 Projects by Program Type

Outcome with Orthotic Intervention in

Children with Cerebral Palsy

(H133G060155) .......................................... 3-57

Cognitive Training and Supported

Employment in Severe Mental Illness

(H133G050230) .......................................... 1-16

Combining Technologies to Maximize

Outcomes: Telemedicine and Online

Training Program for Parents of Children

with Autism (H133G060238) .................... 4-22

Conservative and Surgical Clubfoot

Treatment: Multi-Center Study

(H133G060252) .......................................... 2-96

Constraint-Induced Movement Therapy

Modified for Rehabilitating Arm Function in

Stroke Survivors with Plegic Hands

(H133G050222) .......................................... 2-64

Controlled Study of Affect Recognition

Training for Individuals with Traumatic

Brain Injury (H133G080043) .................... 4-27

Daily Living and Community Skills Video

Game for Children with Developmental

Disabilities (H133G080151) ...................... 4-28

Developing College Campuses as Transition

Settings for Students with Severe and

Multiple Disabilities Aged 18-21

(H133G080158) .......................................... 4-32

Development and Use of a Multi-State

Database on Individual Outcomes and their

Predictors for Persons with Intellectual and

Developmental Disabilities in the US

(H133G080029) ............................................ 5-7

Development of a Cognitive Behavioral

Group Therapy Intervention for Women

with Physical Activity Disabilities who

Experience Depression (H133G070214) ... 2-84

Development of a Safety-Planning Tool for

Men with Disabilities (H133G070190) ...... 4-33

Development of an Intelligently Controlled

Assistive Rehabilitation Elliptical (ICARE)

Training System to Promote Walking and

Fitness in Persons with Physical Limitations

(H133G070209) .......................................... 2-80

Development of an Internet-Based SelfEsteem Intervention for Women with

Disabilities (H133G080042) ...................... 4-36

Development of Dynamic Pedorthosis for

Improving Clubfoot Correction

(H133G060142) .......................................... 3-56

Development of Measures of Participation

and Environment for Children with

Disabilities (H133G070140) ...................... 4-24

Effectiveness of a Group CognitiveBehavioral Intervention for Depression

after TBI and Factors that Affect Response

to Treatment (H133G070222) .................... 2-92

Effectiveness of a Teleconference Fatigue

Management Program for People with

Multiple Sclerosis (H133G070006) ........... 2-74

Efficacy of Pressure Garment Therapy

After Burns (H133G050022) ..................... 2-93

Enhanced Motor Recovery Using

Serotonergic Agents (H133G060124) ....... 2-71

Evaluating Dysphagia in Individuals with

Spinal Cord Injury: Assessing Incidence,

Associated Factors, and Preventable

Complications (H133G080165) ................. 2-66

Evaluating the Effects of Activity-Based

Therapy for Individuals with Chronic

Spinal Cord Injury (H133G080031) .......... 2-70

EVIDAAC: A Database of Appraised

Evidence in Augmentative and Alternative

Communication (H133G070150) .............. 7-11

Exercise Treatment of Obesity-Related

Secondary Conditions in Adults with

Paraplegia (H133G080150) ....................... 2-68

Fifteen-year Course of Competitive

Employment for People with Severe Mental

Illness (H133G050181).............................. 1-17

Functional Effects of Bifocal Use:

Implications for Falling Interventions

(H133G050340) .......................................... 3-55

Impact of Prospective Payment and

Rehabilitation Outcomes (H133G080163) ... 5-9

Improved Weight Bearing Evaluation of

Knee Osteoarthritis (H133G080136) ......... 3-48

Improving Representative Payeeship for

People with Psychiatric Disabilities and

their Families (H133G070058) .................. 4-29

Inclusive Indoor Play (H133G040324) ...... 3-38

Instrument to Measure Recovery-Promoting

Competence Among Providers Serving

Spanish Speaking Mental Health Consumers

(H133G060071) .......................................... 4-23
E- 9 Projects by Program Type

Investigating the Effects of Snoezelen in

Children Recovering from Severe Brain

Injury (H133G070119) .............................. 2-67

Investigation of Interventions for Sitting Postural

Control in Young Children with Moderate to

Severe Cerebral Palsy (H133G080023) ..... 2-82

Investigation of the Dynamics of

Development of Sitting Postural Control in

Infants with Cerebral Palsy

(H133G040118) .......................................... 2-81

A Longitudinal Study of Risk for

Hospitalization, Pressure Ulcers, and

Subsequent Injuries After Spinal Cord

Injury (H133G050165) .............................. 2-90

A Means of Expression: Online

Communication Assessment to Improve

Outcomes for Individuals with Severe

Disabilities (H133G070129) ...................... 3-52

Micromachined Braille Reader

(H133G070135) .......................................... 3-50

Minimal Classroom Requirements for

Optimal Acoustic Access to Speech by

Children with and Without Hearing Loss

(H133G060116) .......................................... 3-47

Multimodal Access to Information Graphics

(H133G080047) .......................................... 3-34

A National Assessment of the Rates and

Correlates of Alcohol and Other Drug Use

by College Students with Disabilities

(H133G080123) .......................................... 5-10

Neuroanatomical Correlates of Positive

Psychology Among People with Traumatic

Brain Injury: A Biopsychosocial Model

(H133G080064) .......................................... 2-79

A New Measure of Subjective Fatigue in

Persons with Traumatic Brain Injury

(H133G080168) .......................................... 2-65

Optimized Hands-Free Speech Recognition

(H133G050354) .......................................... 3-43

Outpatient Social Skills Training for

Distressed Adolescent Burn Survivors

(H133G050079) .......................................... 4-35

Overcoming Gravity Induced Arm and

Hand Dysfunction to Restore Functional

Reaching Following Stroke

(H133G070089) .......................................... 3-41

Parent-Infant Interaction Project (PIIP)

(H133G080132) .......................................... 4-34

Participation, Subjective Well-Being,

Health, and Spinal Cord Injury: A 35-Year

Longitudinal Study (H133G060126) ......... 2-91

Pathways to Depression: An Examination

of Vulnerability and Stress in Adults with

Spinal Cord Injury (H133G070020) .......... 2-78

Personal Audio Information Service

(H133G070093) .......................................... 3-37

Promoting Health, Empowerment, and

Community Integration Among People

with HIV/AIDS: The Medication

Adherence Program Study-II (MAPS-2)

(H133G060224) .......................................... 4-21

Public Spending for Disability in the United

States: A Comparative, Longitudinal Study

(H133G070163) ............................................ 5-6

Quality of Life in Traumatic Brain Injury Research and Practice: Development of the

TBI-QOL (H133G070138)........................ 2-83

A Randomized Trial of Realignment

Therapy for Treatment of Medial Knee

Osteoarthritis (H133G040201)................... 2-75

Rehabilitation of Reaching in Chronic

Stroke Using an Anti-Gravity Force Field

(H133G060169) .......................................... 2-72

Sensorimotor Training and Assessment in

Adults with Hemiplegic Cerebral Palsy:

The ULTrA Program (H133G050151) ...... 2-76

Systematic Study of the Effectiveness of

AAC Intervention to Improve Conversation

in Individuals with Degenerative Language

Disorders (H133G080162) ........................ 3-53

Teen Online Problem Solving for Pediatric

Brain Injury (H133G050239) .................... 4-30

Telephone and In-Person Cognitive

Behavioral Therapy for Depression After

Traumatic Brain Injury (H133G070016).... 2-94

Treatment Components and Active

Ingredients in a Scheduled Telephone

Intervention for Traumatic Brain Injury

(H133G070143) .......................................... 2-87

Understanding the Determinants of Motor

Ability, Self-Care, and Play of Young
E-10 Projects by Program Type

Children with Cerebral Palsy

(H133G060254) .......................................... 2-88

Universal Design of Tactile Exhibits with

Touch Activated Descriptive Audio for

Aquariums (H133G060284) ...................... 3-51

Use of Functional Neuroimaging to Assess

the Status of the Attention Networks

Following Traumatic Brain Injury

(H133G050219) .......................................... 2-85

Using the U.S. Equal Employment

Opportunity Commission (EEOC)

Employment Discrimination Charge Data

System for Research and Dissemination

Purposes (H133G040265) ........................... 5-8

Video Gaming Technology to Promote

Health and Fitness Among Adolescents

with Disabilities (H133G080120) .............. 3-42

Virtual Reality Assessment and Treatment

of Hemispatial Neglect (H133G060086) ... 2-89

Web Therapy to Improve Outcomes After

Traumatic Brain Injury in Young Children

(H133G060167) .......................................... 4-31

Web-based Student Processes at Community

Colleges – Tools for Ensuring Accessibility

(H133G040255) .......................................... 3-49

Web-Based Treatment for Aphasia

(H133G060055) .......................................... 3-40

Work Environment and Quality of Life Outcomes: A Comparison of the Experiences of

Formal and Informal Caregivers of Persons

with Spinal Cord Injuries

(H133G060267) .......................................... 4-25

Workplace Accommodation Wizard: An

Assessment and Accommodation Tool for

Employers (H133G070063)....................... 3-39

Zolpidem and Restoration of Consciousness: An

Exploration of the Mechanism of Action

(H133G080066) .......................................... 2-86

Fellowships (Distinguished)

Demographic Soup: Disentangling the

Conceptual, Political, and Methodological

Dimensions of Disability Statistics

(H133F060011)........................................... 9-14

A Mixed Methods Study of Parenting,

Children, and Recovery in Mothers with

Severe Psychiatric Disabilities

(H133F080009) .......................................... 9-15

Multi-Joint/DOFs Diagnosis and Treatment

of Upper Limb in Patients Post Stroke

Using an Exoskeleton Robot

(H133F080021) .......................................... 9-13

Fellowships (Merit)

Development of a Neural-Machine

Interface for Lower-Limb Prosthesis Control

(H133F080006) .......................................... 9-17

Physical and Social Environmental Factors

that Influence Health and Participation

Outcomes for Chronically-Ill Adults

(H133F080014) .......................................... 9-20

Psychometric Evaluation of the Family

Quality of Life Survey for Minority

Families (H133F080024) ........................... 9-19

A Survey of Postsecondary Disability

Services Use by Students with Psychiatric

Disabilities (H133F080030) ....................... 9-18

Virtual Reality-Based Assessment Tool for

Spatial Neglect Following Stroke

(H133F080010) .......................................... 9-16

Advanced Rehabilitation Research Training

Projects

Advanced Psychiatric Rehabilitation

Research on Employment and Community

Integration (H133P050006) ....................... 9-29

Advanced Rehabilitation Research and

Disability Policy Training Center

(H133P070004) .......................................... 9-32

Advanced Rehabilitation Research Training

(H133P020003) .......................................... 9-34

Advanced Rehabilitation Research Training

(H133P080007) .......................................... 9-35

Advanced Rehabilitation Research Training

Center on Neuro-musculoskeletal

Rehabilitation (H133P070007) .................. 9-30

Advanced Rehabilitation Research Training

in Pediatric Mobility (H133P080005) ........ 9-39

Advanced Rehabilitation Research Training

Program (H133P050004) ........................... 9-31

Advanced Rehabilitation Research Training

Project in Rehabilitation Services Research

(H133P080006) .......................................... 9-24
E- 11 Projects by Program Type

Advanced Research Training Program

(H133P040006) .......................................... 9-36

Advanced Research Training Program in

Psychiatric Rehabilitation

(H133P070001) .......................................... 9-26

Advanced Training in Translational and

Transformational Research to Improve

Vocational Outcomes for Persons with

Disabilities (H133P060003) ....................... 9-23

Clinician Researchers and Engineers:

Advanced Rehabilitation Research Training

(H133P040008) .......................................... 9-38

Health Activity Rehabilitation Research

Training Center (HARRTC)

(H133P050005) .......................................... 9-28

Interdisciplinary Rehabilitation Research

Training Program (H133P040003)............. 9-33

Post-Doctoral Fellowship in Rehabilitation

Outcomes and Effective Research

(H133P050001) .......................................... 9-25

Rehabilitation Science for Basic Scientists

and Engineers: An Advanced Training

Program (H133P040007) ........................... 9-22

The UMHS/MSU/AACIL Rehabilitation

Research Training Program

(H133P030004) .......................................... 9-27

University of Washington Advanced

Rehabilitation Research Training

(H133P080008) .......................................... 9-37

ADA Technical Assistance Projects

DBTAC - Great Plains ADA Center -

Region VII (H133A060089) ...................... 8-10

DBTAC Rocky Mountain ADA Center -

Region VIII (H133A060079) .................... 8-11

DBTAC: Great Lakes ADA Center

(H133A060097) ............................................ 8-7

DBTAC: Mid-Atlantic ADA Center

(H133A060085) ............................................ 8-5

DBTAC: Southeast ADA Center -

Region IV (H133A060094) ......................... 8-6

Disability and Business Technical Assistance

Center - Northeast (H133A060088) ............. 8-4

Disability and Business Technical Assistance

Center (DBTAC) — Northwest

(H133A070048) .......................................... 8-13

Disability and Business Technical Assistance

Center (DBTAC) — Pacific ADA Center

(H133A060098) .......................................... 8-12

New England Disability and Business

Technical Assistance Center - Region I

(H133A060092) ............................................ 8-3

Southwest Disability and Business Technical

Assistance Center (Southwest DBTACRegion VI) (H133A060091) ........................ 8-9

Small Business Innovation Research (SBIR),

Phase I

Connectivity to Modern Electronics for the

Hearing Disabled (H133S080032) ............. 3-65

Context Aware Self Management Tools for

Individuals with Significant Cognitive

Disabilities (H133S080041) ....................... 4-37

Conversational Computer Interface for

Managing Personal Information: JotChat

(H133S080023) .......................................... 3-71

Creating Audio-Tactile Illustrated Digital

Talking Books Using a Digital Pen-Based

Computing Platform (H133S080030) ........ 3-67

Development and Evaluation of a LocationBased Multimedia System for Providing

Access to Information in Community

Settings (H133S080044) ............................ 3-58

Development and Evaluation of a Universal

Design Multimedia Approach to Enable

Autonomous Composition by Students and

Adults with Intellectual Disabilities

(H133S080007) .......................................... 3-59

Diabetes Monitoring for Cognitively

Impaired Adults (H133S080013) ............... 3-68

Evaluation of a Universally Designed

Multimedia Approach to Promote

Independent Access to Instant Messaging

Technology for Individuals with Intellectual

Disabilities (H133S080008) ....................... 3-60

Knowledge Athletes Platform:

Capitalizing on Online Communication to Increase Participation and Learning for All

Students (H133S080027) ........................... 3-66

Money Coach: A Money Management

System to Facilitate Independent Living for

Individuals with Intellectual Disabilities

(H133S080042) .......................................... 3-61
E-12 Projects by Program Type

Pocket Email: Development and Evaluation

of an Accessible PDA-Based Email

Program to Facilitate Remote

Communication for Individuals with

Intellectual Disabilities (H133S080014) ..... 3-62

Signing Science Pictionary for Young

Learners who are Deaf or Hard of Hearing

(H133S080039) .......................................... 3-63

A Social Networking System for Parents

and Professionals Working with Children

with Autism Spectrum Disorders

(H133S080021) .......................................... 3-69

SoundCompass - A Wearable Sound

Direction and Motion Detector for People

who are Deaf or Hard of Hearing

(H133S080054) .......................................... 3-64

Utility Arm and Upper Limb Prosthesis

(H133S080017) .......................................... 3-70

Small Business Innovation Research (SBIR),

Phase II

ATLAS: An Accessible Testing, Learning,

and Assessment System for Individuals with

Intellectual Disabilities to Facilitate

Inclusion and Access to the General

Curriculum (H133S080066) ...................... 3-72

Hearing Companion: Handheld Portable

Sound Identification and Critical Alerting

Functionality for People Who Are Deaf or

Have Hearing Loss (H133S080075) .......... 3-75

A Low-Cost Portable/Wearable Device for

Intelligent Stretching and Movement

Training of Hypertonic Forearm in Stroke

with Outcome Evaluation

(H133S080076) .......................................... 3-74

Low Vision Lime: Solution for Low Vision

Musicians to Read, Perform, Write, and

Print Music Notation (H133S070089) ....... 3-82

Mobile Language Reference for Deaf and

Hard-of-Hearing K-12 Students

(H133S070088) .......................................... 3-73

My ScrivenerTMInnovative Technology to

Enhance Fine Motor Function

(H133S070082) .......................................... 3-78

Powered Mounting and Positioning System

(H133S060096) .......................................... 3-77

Television Assisted Promotion (TAP):

Enhancing Rehabilitation Outcomes with

Familiar Technology (H133S080077)........ 3-80

Universal Access to Passenger Rail

(H133S050136) .......................................... 3-81

Why Go It Alone? The Use of Public

Resources to Enhance Computer

Accessibility for Individuals with

Intellectual Disabilities (H133S070096) ..... 3-79

Wireless EMG Preamp and Improved

Mounting System (H133S070084) ............ 3-83

Wireless Wrist Device to Alert the Deaf of

Sounds and Events in Their Environment

(H133S080068) .......................................... 3-76

Utilization Projects

ABLEDATA (ED-04-CO-0018/0007) ....... 7-13

National Rehabilitation Information Center

(NARIC) (ED-08-CO-0095) ...................... 7-12