NIDRR Program Directory

Fiscal Year 2003

Produced by The National Rehabilitation Information Center

A project funded by The National Institute on Disability and Rehabilitation Research, project number ED-02-CO-0002

National Institute on Disability and Rehabilitation Research

Program Directory 2003

Produced by the

National Rehabilitation Information Center

Lanham, MD

Mark X. Odum

Director

Daniel L. Wendling

Media and Public Education Manager

Jessica H. Chaiken

Media Specialist
The full text of this public domain publication is available at the NARIC’s home page at http://

www.naric.com and in alternate formats upon request. For more information, please contact us at:

NARIC

4200 Forbes Boulevard, Suite 202

Lanham, MD 20706

800/346-2742 or 301/459-5900 (Voice)

or 301/459-4263 (TTY).
Contents

Introduction .....................................................................................................i

Research Priorities

Employment Outcomes .................................................................................1

Health and Function.......................................................................................2

Technology for Access and Function............................................................3

Independent Living and Community Integration.........................................4

Associated Disability Research Areas ............................................................5

Knowledge Dissemination and Utilization ...................................................6

ADA Technical Assistance Projects ...............................................................7

Capacity Building for Rehabilitation Research Training ..............................8

State Technology Assistance .........................................................................9

Appendices

Subject Index ................................................................................................A

Grantees ......................................................................................................... B

Projects by State ............................................................................................ C

Principal Investigators ...................................................................................D

Projects by Program Type ............................................................................ E

Introduction

The mission of the National Institute on Disability and Rehabilitation Research (NIDRR) is to generate, disseminate and promote knowledge that will improve the lives of persons with disabilities in their

communities. NIDRR conducts comprehensive and coordinated programs of research and related

activities to assist in the achievement of the full inclusion, social integration, employment, and independent living of people with disabilities. This edition of the NIDRR Program Directory lists all projects

funded by NIDRR during the 2003 fiscal year.

NIDRR’s Long-Range Plan, announced in the Federal Register, December 7, 1999 (http://

www.ed.gov/offices/OSERS/NIDRR/#LRP), provides background on NIDRR’s conceptual base. It

describes the “new paradigm of disability,” which posits that disability is an interaction between the

individual and the environment. NIDRR’s research focus includes such areas as: employment outcomes, health and function, technology for access and function, independent living and community

integration, associated disability research areas, knowledge dissemination and utilization, and capacity

building for rehabilitation and international activities. For detailed descriptions of these areas, consult

the Long-Range Plan.

NIDRR’s Research Program

NIDRR’s research is conducted via a network of individual research projects and centers of excellence

throughout the country. Most NIDRR grantees are universities or providers of rehabilitation or related

services. NIDRR’s largest funding programs are the Rehabilitation Research and Training Centers

(RRTCs) and Rehabilitation Engineering Research Centers (RERCs). NIDRR also makes awards for

information dissemination and utilization centers and projects, field initiated projects, research and

development projects, advanced research training projects, Mary E. Switzer fellowships and NIDRR

scholars, small business innovative research, and model systems of care. NIDRR also administers the

State Technology Assistance Projects, the Assistive Technology Loan Funds, and the Disability and

Business Technical Assistance Centers.

Disability and Rehabilitation Research Projects

The Disability and Rehabilitation Research Projects (DRRP) program allows for projects with special

emphasis on research, demonstrations, training, dissemination, utilization, and technical assistance.

Projects may include combinations of these activities. True to the mission of NIDRR, these projects

may develop methods, procedures, and rehabilitation technology to assist in achieving the full inclusion and integration into society, employment, independent living, family support, and economic and

social self-sufficiency of individuals with disabilities, especially individuals with the most significant

disabilities, or to improve the effectiveness of services authorized under the Rehabilitation Act.

Model Systems

NIDRR administers programs that have become world-renowned model systems of care for persons

with spinal cord injuries, burns, and traumatic brain injuries. The Model Systems establish innovative

projects for the delivery, demonstration, and evaluation of comprehensive medical, vocational, and

other rehabilitation services. The work of the Model Systems begins at the point of injury and ends
with successful re-entry into full community life. These projects collect and contribute data on patient

characteristics, diagnoses, causes of injury, interventions, outcomes, and costs to a uniform national

database; participate in collaborative research with other Model System centers; and coordinate research efforts with other related grant recipients.

Advanced Rehabilitation Research Training Projects

The Advanced Rehabilitation Research Training (ARRT) Program (formerly known as the Research

Training Grants Program) expands the capacity of the field of rehabilitation research by providing

advanced training opportunities. These projects provide rehabilitation research training for persons

with clinical or other experience, who may be lacking certain formal research training. Grants are made

to institutions to recruit qualified persons with doctoral or similar advanced degrees with clinical,

management, or basic science research experience, and prepare them to conduct independent research

on problems related to disability and rehabilitation. This research training may integrate disciplines,

teach research methodology in the environmental or new paradigm context, and promote the capacity

for Disability Studies and rehabilitation science. These training programs must operate in interdisciplinary environments and provide training in rigorous scientific methods.

Rehabilitation Research and Training Centers

NIDRR’s Rehabilitation Research and Training Centers (RRTCs) conduct coordinated and integrated

advanced programs of research targeted toward the production of new knowledge, which may improve rehabilitation methodology and service delivery systems, alleviate or stabilize disabling conditions, or promote maximum social and economic independence for persons with disabilities. Operated

in collaboration with institutions of higher education or providers of rehabilitation or other appropriate

services, RRTCs serve as centers of national excellence in rehabilitation research. Also, they are

national or regional resources for research information for individuals with disabilities and the parents,

family members, guardians, advocates, or authorized representatives of the individuals. These centers

also conduct related training programs, including graduate, pre-service and in-service training. The

centers also disseminate and promote the utilization of research findings.

Rehabilitation Engineering Research Centers

Rehabilitation Engineering Research Centers (RERCs) conduct programs of advanced research of an

engineering or technical nature designed to apply advanced technology, scientific achievement, and

psychological and social knowledge to solve rehabilitation problems and remove environmental

barriers. Each center is affiliated with one or more institutions of higher education or nonprofit organizations. The RERCs’ work in a rehabilitation setting provides an environment for cooperative research

and the transfer of rehabilitation technologies into rehabilitation practice. Involved at both the individual and systems levels, RERCs seek to find and evaluate the newest technologies, products, and

methods that ultimately can benefit the independence of persons with disabilities and the universal

design of environments for all people of all ages. The centers also exchange technical and engineering

information worldwide and improve the distribution of technological devices and equipment to individuals who need them.
State Technology Assistance Projects

This program supports statewide, consumer-driven, technology-related assistance networks for individuals

of all ages and disabilities. States and territories are eligible to apply for one grant per entity which spans a

total of ten years of Federal funding. The first phase is a development grant and lasts for three years. The

second phase is known as the first extension and can last for two more years. The third and final phase is

known as the second extension and lasts for five additional years. The Assistive Technology Act of 1998

(AT Act) authorized three additional years for States that have completed ten years, at a reduced funding

level. Several states have received one-year alternative financing projects aimed at providing financial

assistance in the purchase of assistive technology. Projects work with public and private lenders in their

states.

Fellowships

Fellowships, named for the late Mary E. Switzer, give individual researchers the opportunity to develop new ideas and gain research experience. There are two levels of fellowships: Distinguished

Fellowships and Merit Fellowships. Distinguished Fellowships go to individuals of doctorate or

comparable academic status, who have had seven or more years of experience relevant to rehabilitation

research. Merit Fellowships are given to persons with rehabilitation research experience, but who do

not meet the qualifications for Distinguished, usually because they are in earlier stages of their careers.

Fellows work for one year on an independent research project of their design.

NIDRR Scholars

The Scholars program attempts to build research capacity by recruiting undergraduates with disabilities

to work in NIDRR-funded Centers and projects and introduces them to disability and rehabilitation

research issues. Scholars gain work experience and participating centers receive a small stipend. This

program is an innovative approach aimed at generating interest in research careers for persons with

disabilities.

ADA Technical Assistance Projects

NIDRR administers a network of grantees to provide information, training, and technical assistance to

businesses and agencies with responsibilities under the Americans with Disabilities Act (ADA). Ten

regional Disability and Business Technical Assistance Centers (DBTACs) are funded to provide

information and referral, technical assistance, public awareness, and training on all aspects of the

ADA. Several National Training Projects target particular groups, organizations, or subject areas for

ADA training and the ADA Technical Assistance coordinator contract assists all of the grantees with

their activities.

Small Business Innovative Research

Small Business Innovative Research (SBIR) grants help support the production of new assistive and

rehabilitation technology. This two-phase program takes a product from development to market readiness.
NIDRR Contracts

Through its contracts, NIDRR seeks improved methods, systems, products, and practices to add to its

work. The contracts are for specific activities related to management, research, and information dissemination.

NARIC and the NIDRR Program Directory

The Program Directory is compiled by the National Rehabilitation Information Center (NARIC).

NARIC functions as NIDRR’s library, providing the rehabilitation community with information and

referral services to help locate pertinent research related to specific areas of expertise. Since 1977,

NARIC has been the primary source of rehabilitation and disability information generated by NIDRR

funds, with special priority services to NIDRR staff and NIDRR-funded project staff.

NARIC also produces a companion to the Program Directory, which is the Compendium of Products

by NIDRR Grantees and Contractors. Copies of NIDRR-supported research products are received by

NARIC and added to the reference collection and Compendium database. Information about holdings

are available online at http://www.naric.com.

Neither NARIC nor NIDRR assumes liability for the Directory’s contents or the use thereof. NARIC

does not evaluate or certify the programs or products of the organizations listed in the Directory.

This Directory is not intended for use as a fiscal document to show how NIDRR funds are allocated;

its purpose is to display the range of programs that NIDRR supports. This listing is current as of

January 15, 2004. This directory may incude projects that have passed the indicated extension date.

NARIC operates under U.S. Department of Education contract ED-02-CO-0002.

Employment Outcomes

NIDRR seeks to improve employment outcomes for people with disabilities by

funding research into a wide spectrum of employment and disability issues,

including economics; Federal, State, and community employment programs;

accommodation; technology; education; and ergonomics and the work environment.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Disability and Rehabilitation Research Projects .................................................................................. 12

Field-Initiated Projects (FIPs) .............................................................................................................. 16

Small Business Innovative Research (SBIR), Phase I ......................................................................... 28

Small Business Innovative Research (SBIR), Phase II ........................................................................ 30

NIDRR Program Directory FY 2003 - Employment Outcomes 1-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Arkansas

Rehabilitation Research and Training Center on Improving Vocational

Rehabilitation Services for Individuals Who Are Deaf or Hard of

Hearing

University of Arkansas/Little Rock

College of Education

4601 West Markham Street

Little Rock, AR 72205

dwatson@uark.edu

www.uark.edu/deafrtc

Principal Investigator: Douglas Watson, PhD

Public Contact: 501/686-9691; Fax: 501/686-9698

Project Number: H133B010501

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $600,000; FY 02 $600,000; FY 03 $600,000

Abstract: This program conducts coordinated research and training to enhance the rehabilitation

outcomes of persons who are deaf or hard of hearing who are served by VR and related employment

programs. When appropriate, the unique needs of specific subgroups within this diverse and heterogeneous population are investigated. The ultimate goal of these efforts is to improve the capacity of the

VR system and related programs to address the career preparation, entry, maintenance, and advancement, as well as the community living needs, of the target population. Research activities include:

investigating the impact of changes in federal employment and rehabilitation legislation and policy on

the delivery of services to the target population; investigating the impact of business practices that

contribute to accessible work and workplace supports to enhance the employment of the target population; and identifying, developing, and assessing rehabilitation-related innovations that enhance employment and community living outcomes of the target population.
1-4 NIDRR Program Directory FY 2003 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Hawaii

National Center for the Study of Postsecondary Educational Supports:

A Rehabilitation Research and Training Center

University of Hawaii at Manoa

Center on Disability Studies/University Affiliated Program

1776 University Avenue/UA4-6

Honolulu, HI 96822

stodden@hawaii.edu; huap@hawaii.edu

www.rrtc.Hawaii.edu

Principal Investigator: Robert Stodden, PhD, 808/956-9199

Public Contact: Juana Tabali Weir, Administrative Assistant; Valerie Shearer, Pacific Rim and Grants

Coordinator, 808/956-3975 (Tabali-Weir); 808/956-2673 (Shearer); Fax: 808/956-5713

Project Number:a: H133B980043

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 98 $595,000; FY 99 $605,000; FY 00 $600,000; FY 01 $600,000; FY 02

$600,000; FY 03 (No-cost extension through 4/30/2004)

Abstract: The research this project conducts on educational supports is designed to increase access to

postsecondary education programs and improve outcomes for people with disabilities. The research

includes: (1) examining and evaluating the current status of educational supports, including (a) individual academic accommodations, (b) adaptive equipment, (c) coordination of supports and services,

(d)self determination, and (e) personal counseling and career advising; (2) identifying effective support

practices and models of delivery that contribute to successful access, performance, and retention and

completion of postsecondary programs; (3) identifying specific barriers to the provision of disabilityrelated services, including policy and funding requirements; (4) assessing the effectiveness of promising educational practices and disability-related services that are important to career mobility and success in the workplace; (5) testing the effectiveness of specific models of delivery that are believed to

increase the accessibility of educational supports and innovative technologies; (6) identifying the types

of educational and transitional assistance that postsecondary programs provide to improve educational

and subsequent labor market success; (7) providing training, technical assistance, and information to

support personnel, public and private rehabilitation personnel, career placement specialists, and students with disabilities and their families based on the findings and implications of the research program; and (8) implementing a consumer-driven empowerment evaluation plan for assessment of the

Center’s progress in achieving its goals. Additional goals include conducting national surveys and field

studies within diverse postsecondary educational settings, and implementing an innovative and integrated training, technical assistance, and dissemination model to ensure the application and

sustainability of research-proven policy and practice.
NIDRR Program Directory FY 2003 - Employment Outcomes 1-5

Rehabilitation Research and Training Centers (RRTCs)

Iowa

Rehabilitation Research and Training Center on Workforce Investment

and Employment Policy for Persons with Disabilities

University of Iowa College of Law

Law, Health, Policy, and Disability Center

100 Gilmore Hall

Iowa City, IA 52242

mmorris@ncbdc.org

www.its.uiowa.edu/law/lhpdc/rrtc/index.html

Principal Investigator: Michael Morris, JD; Peter D. Blanck, PhD, JD; Michael Collins; Robert

Silverstein

Public Contact: Michael Morris, JD, Project Director, 202/521-2930; Fax: 202/218- 7297

Project Number: H133B010102

Start Date: November 1, 2001

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $588,756; FY 03 $224,981

Abstract: This Center helps expand, improve, and modify disability policy and other more general

policies in order to improve the employment status of Americans with disabilities and increase their

independence and self-sufficiency. Based on research from this project and other NIDRR-funded

projects, this project establishes an information and technical assistance resource to government leaders

and decision makers at state and federal levels, individuals with disabilities, parents and family members, and other interested parties, offering new and revised approaches to workforce development and

employment policy. Studies conducted by this project include: (1) an analysis of the relationship

between select federal and state policies upon the employment of people with disabilities, (2) an

analysis of the policy-based implications of outcome-based reimbursement on the delivery of employment and rehabilitation services to people with disabilities, and (3) an analysis of the effect of civil

rights protections and multiple environmental factors on promoting or depressing the employment

status of people with disabilities. The Center actively seeks to be outcome-focused and involve individuals with disabilities, parents, and family members in all facets of project activities, including

training, research, information dissemination, and technical assistance.
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Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center on State Systems and

Employment

Institute for Community Inclusion

University of Massachusetts/Boston

100 Morrissey Boulevard

Boston, MA 02125

ici@umb.edu

www.communityinclusion.org/rrtc

Principal Investigator: William E. Kiernan, PhD

Public Contact: John Butterworth, PhD, 617/287-4357; Fax: 617/287-4352

Project Number: H133B980037

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000; FY 02

$700,000; FY 03 $350,000

Abstract: This Center identifies effective practices in coordinated employment efforts and facilitates

such development at local, regional, and state levels. It also influences policy, practice, and perceptions

on the national level. Project activities include investigations, technical assistance, and public policy

reviews focused on: (1) examining state service systems, including VR, mental health, mental retardation, employment and training services (including one-stop career centers and welfare-to-work programs), and education to document promising policies and practices reflecting integrated and coordinated approaches to employment of people with disabilities; (2) documenting actual employment

outcomes for people with disabilities through the analysis of national, state, and local data collection

systems; (3) documenting strategies state agencies use for overcoming barriers to employment at the

state and local levels; (4) examining, documenting, and disseminating practices at the state level that

respond to the employment and support needs of SSI and SSDI beneficiaries; and (5) reviewing and

evaluating strategies and approaches to develop a more integrated employment approach at the federal

and state levels, in order to enhance the employment of people with disabilities.
NIDRR Program Directory FY 2003 - Employment Outcomes 1-7

Rehabilitation Research and Training Centers (RRTCs)

Mississippi

RRTC on Improving Vocational Rehabilitation Services for Individuals

Who Are Blind or Have Severe Visual Impairments

Mississippi State University

P.O. Box 6189

Mississippi State, MS 39762

schaefer@ra.msstate.edu

www.blind.msstate.edu

Principal Investigator: J. Elton Moore, EdD, 662/325-2001

Public Contact: Kelly Schaefer, 662/325-7825 (V); 662/325-8693 (TTY); Fax: 662/325-8989

Project Number: H133B010101

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $600,000; FY 02 $600,000; FY 03 $670,000

Abstract: This program includes a variety of research and training activities that focus on improving

VR services for individuals who are blind or have severe visual impairments. Activities include: (1)

investigating and documenting the impact of changes in disability and employment legislation on the

unique employment-related needs of individuals who are blind or have visual impairments, as well as

their impact on service delivery options and policy; (2) investigating, documenting, and analyzing

existent state and federal data sets to determine different employment outcomes for persons who are

blind or have visual impairments and the relationship of the outcomes to client and service provider

characteristics; (3) investigating and documenting how state VR agencies, other public agencies, and

private service providers overcome environmental barriers in order to improve employment outcomes

for individuals who are blind or have visual impairments; (4) developing a national information and

resource referral database for the training needs of state business enterprise program facilities, developing and delivering training programs to meet the identified training needs, and developing measures

that can be used to evaluate the efficacy of the training; (5) conducting three conferences to train VR

staff on state-of-the-art information and computer technology for individuals who are blind or have

visual impairments; and (6) conducting a coordinated and advanced program of training in rehabilitation research focusing on blindness and low vision, including training in applied research methodology

that is designed to increase the number of qualified doctoral-level researchers working in the area of

blindness rehabilitation.
1-8 NIDRR Program Directory FY 2003 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Montana

Rehabilitation Research and Training Center on Disability in Rural

Communities

University of Montana

The University of Montana Rural Institute: A Center for Excellence in Disability Research, Education

and Services

52 Corbin Hall

Missoula, MT 59812-7056

rural@ruralinstitute.umt.edu

rtc.ruralinstitute.umt.edu

Principal Investigator: Tom Seekins, PhD, 406/243-2654

Public Contact: Diana Spas, 888/268-2743 (V, information service only); 406/243- 5467 (V); 406/

243-4200 (TTY); Fax: 406/243-2349

Project Number: H133B030501

Start Date: December 1, 2002

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $600,000

Abstract: The research conducted by this project improves the employment status of people with

disabilities in the rural U.S., enhances their ability to live independently, and advances the science of

rural disability studies. Four core areas comprise eleven research projects in rural employment and

economic development; rural health and disability; rural community transportation and independent

living; and rural policy foundations. Projects include: (1) develop scientific methods to measure how

rural environments influence an individual’s community participation; (2) collaborate with very small

rural businesses to employ people with disabilities; (3) improve rural transportation options; and (4)

create programs to prevent or improve secondary conditions. Other projects explore ways for new

partners, including faith-based organizations, to be involved in improving rural services. A training

program disseminates research findings, trains students, and sparks the creative engagement of

policymakers and social advocates. The innovative STATE (Same-Time Availability to Everyone)

policy requires that the project provide standard print publications to the general public only when at

least two alternative formats are also available to individuals with disabilities.
NIDRR Program Directory FY 2003 - Employment Outcomes 1-9

Rehabilitation Research and Training Centers (RRTCs)

 ̃New York

Rehabilitation Research and Training Center for Economic Research

on Employment Policy for Persons with Disabilities

Cornell University

Program on Employment and Disability

School of Industrial and Labor Relations

331 Ives Hall

Ithaca, NY 14853-3901

smb23@cornell.edu

www.ilr.cornell.edu/ped/dep/rrtc.html

Principal Investigator: Susanne Bruyère, PhD; Richard Burkhauser, PhD; David Stapleton, PhD

Public Contact: Susanne Bruyère, PhD, 607/255-9536 (V); 607/255-2891 (TTY); Fax: 607/255-

2763

Project Number: H133B980038

Start Date: December 16, 1998

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000; FY 02

$700,000; FY 03 (No-cost extension through 4/30/2004)

Abstract: Using principles of economics, this project conducts policy research on how environmental

factors influence the work outcomes of people with disabilities. Research also addresses critical aspects

of employment outcomes, recognizing the heterogeneity of people with disabilities, and explains the

importance of interactions among the multiplicity of programs intended to meet the employment needs

of people with disabilities. Components include: (1) a comprehensive analysis, using existing panel

data, of the current employment status of people with disabilities; (2) a longitudinal analysis of the

effects of labor market change on the employment and earnings of people with disabilities; (3) a

longitudinal analysis of return-to-work after the onset of a disability; (4) a longitudinal analysis of the

impact of civil rights protections on the employment and earnings of people with disabilities; (5)

identification and analysis of policies that foster or impede the participation of transitioning students in

rehabilitation or employment service programs; and (6) analysis of emerging and important issues

affecting the employment of people with disabilities.
1-10 NIDRR Program Directory FY 2003 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Virginia

Rehabilitation Research and Training Center on Workplace Supports

Virginia Commonwealth University

Rehabilitation Research and Training Center on Workplace Supports

1314 West Main Street, Box 842011

Richmond, VA 23284-2011

tcblanke@vcu.edu

www.worksupport.com

Principal Investigator: Paul Wehman, PhD

Public Contact: Valerie Brooke, Associate Director, 804/828-1851 (V); 804/828- 2494 (TTY); Fax:

804/828-2193

Project Number: H133B980036

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 98 $699,992; FY 99 $699,992; FY 00 $699,992; FY 01 $699,992; FY 02

$699,992; FY 03 $1,089,773

Abstract: This Center helps to increase the national employment rate among people with disabilities

by identifying factors in the work environment that inhibit or enhance employment outcomes and by

sharing the results with the business community. Researchers: (1) analyze existing or new financial

incentives to find those that encourage enterprises to hire or retrain workers with disabilities; (2)

measure the effectiveness of disability management and return-to-work strategies; (3) assess employers’ need for information, training, and resources; (4) conduct, in business settings, interventions that

respond to employer needs; (5) analyze the interventions to determine their effectiveness; and (6)

determine the impact of changes in work structures such as telecommuting and self-employment on the

employment outcomes of people with disabilities. Stakeholders who benefit from these research,

training, technical assistance, and dissemination efforts include business personnel; rehabilitation

service personnel; federal and state policy-makers; people with disabilities; their guardians, advocates,

and authorized representatives; students; and the general public.
NIDRR Program Directory FY 2003 - Employment Outcomes 1-11

Rehabilitation Research and Training Centers (RRTCs)

Wisconsin

Rehabilitation Research and Training Center on Community

Rehabilitation Programs to Improve Employment Outcomes

University of Wisconsin/Stout

Stout Vocational Rehabilitation Institute

College of Human Development

220 Tenth Avenue East

Menomonie, WI 54751

rtc@uwstout.edu

www.rtc.uwstout.edu

Principal Investigator: Fredrick E. Menz, PhD

Public Contact: 715/232-1389 (V); 715/232-5025 (TTY); Fax: 715/232-2251

Project Number: H133B980040

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000; FY 02

$700,000; FY 03 $421,983

Other funding: FY 03 $33,724 (Social Security Administration), $63,627 (NIDRR)

Abstract: This project engages community-based rehabilitation programs (CRPs) and state rehabilitation programs in an effort to open multiple funding sources for rehabilitation and habilitation services

and employment opportunities for people with disabilities. The project includes a series of interrelated

studies directed toward changing outcomes and determining CRP capacities to affect the economic

status of people with disabilities in their communities, and it develops a complementary methodology

for achieving utilization and application of the new knowledge. Primary research tasks: (1) examining

how CRPs are serving people with disabilities from alternate sources of funding; (2) determining the

extent to which consumers pursue and receive services, compared to the intentions of the Rehabilitation Act; (3) exploring what funding, service, and strategy capacities exist to address those intentions

more coherently at the community level; (4) devising and demonstrating practice-program alternatives

that materially improve outcomes from CRPs; and (5) clarifying how CRPs as an industry can be

enjoined as a complementary resource to improve the economic and community integration status of

people with disabilities. The project establishes a publicly accessible national database of core information on CRPs, and includes training, technical assistance, and dissemination activities.
1-12 NIDRR Program Directory FY 2003 - Employment Outcomes

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Iowa

Model Distance-Learning Computer Training Program for Blind and

Visually Impaired Individuals

Iowa Department for the Blind

524 Fourth Street

Des Moines, IA 50309

assist@blind.state.ia.us

www.blind.state.ia.us/assist

Principal Investigator: Curtis Chong

Public Contact: 515/281-1256; Fax: 515/281-1263

Project Number: H133A010104

Start Date: December 1, 2001

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 01 $299,565; FY 02 $299,463; FY 03 $599,028

Abstract: This project creates a model distance-learning program that delivers computer training to

people who are blind or who have visual impairments. The purpose of this program is to increase IT

educational opportunities and employability in the IT field. Project objectives include: (1) developing a

model distance-learning computer training program for people who are blind that results in employment in the IT field; (2) developing 13 distance-learning computer training courses for individuals who

are blind or who have visual impairments and VR professionals; (3) training and preparing 150 individuals who are blind or who have visual impairments for Microsoft Office certification and thus

prepare them for entry-level IT positions; (4) training 50 people who are blind and VR professionals to

provide computer training to job seekers who are blind, thus increasing future IT educational opportunities for people who are blind and those who have visual impairments; and (5) disseminating training

materials and research results to agencies serving individuals who are blind or who have visual impairments.
NIDRR Program Directory FY 2003 - Employment Outcomes 1-13

Disability and Rehabilitation Research Projects

Iowa

I.T. Works

University of Iowa

Law, Health, Policy, and Disability Center

431 Boyd Law Building

Iowa City, IA 52242

james-schmeling@uiowa.edu

disabilities.law.uiowa.edu

Principal Investigator: Peter D. Blanck, PhD, JD, 319/335-9043

Public Contact: Michael Morris, JD; James Schmeling, JD, 202/521-2930 (Morris); 319/335-8459

(Schmeling); Fax: 319/335-9098 (Blanck)

Project Number: H133A011803

Start Date: November 1, 2001

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $299,935; FY 02 $299,724; FY 03 $299,908

Abstract: The goal of the I.T. Works project is to identify barriers to and facilitators of the hiring,

retention, advancement, and wages of individuals with disabilities. Research shows that the percentage

of working-age individuals with disabilities in full- or part-time positions is substantially lower than the

percentage of working-age people without a disability, and there is a demand for trained IT workers.

Increasing the employment of individuals with disabilities in IT-related jobs would increase the employment of individuals with disabilities overall and reduce the shortage for trained IT workers. Research activities for this project include a theoretical model in which predictive measures include

environmental factors, organizational factors, attitudinal factors, and individual characteristics. Outcome measures in the model include hiring rate, advancement rate, retention rate, and wages of individuals with disabilities. Training activities allow for the distribution of the research findings to diverse

target audiences, including employers, IT trainers and professionals, persons with disabilities in diverse

employment settings, other researchers, and relevant policy-makers. Target audiences also include IT

employers; IT training certification bodies; human resource managers; community colleges and university continuing education programs; and Centers for Independent Living and other disability-related

organizations.
1-14 NIDRR Program Directory FY 2003 - Employment Outcomes

Disability and Rehabilitation Research Projects

Mississippi

Persons Aging with Hearing and Vision Loss

Mississippi State University

P.O. Box 6189

Mississippi State, MS 39762

bjlejeune@colled.msstate.edu

www.blind.msstate.edu

Principal Investigator: B.J. LeJeune, RTC, CRC

Public Contact: 662/325-2001; Fax: 662/325-8989

Project Number: H133A020701

Start Date: November 1, 2002

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $500,000; FY 03 $500,000

Abstract: This project investigates strategies to improve outcomes for persons who have a sensory

disability and acquire a second as a result of the aging process. The project conducts a variety of

research, development, training, and dissemination activities and evaluates both technology and model

service delivery approaches for improving employment and community integration options. A Participation action research team provides guidance and direction. The project solicits direct input from key

stakeholders as part of the ongoing planning, development, and implementation of research activities.

These activities include the use of focus groups, a panel of experts, and a study sample that includes a

nationally representative sample of older individuals who are blind or visually impaired and losing their

hearing, and those who are deaf or hard of hearing and losing their vision. This is a collaborative

project of the Rehabilitation Research and Training Center (RRTC) on Blindness and Low Vision at

MSU, the RRTC on Persons Who Are Hard of Hearing or Late Deafened at the National University,

and the Helen Keller National Center for Deaf-Blind Youths and Adults.
NIDRR Program Directory FY 2003 - Employment Outcomes 1-15

Disability and Rehabilitation Research Projects

Missouri

Preparing Avenues for Competitive Employment in Information

Technology (PACE-IT) Project

University of Missouri/Columbia

Educational and Counseling Psychology

205 Lewis Hall

Columbia, MO 65211

hollidayg@missouri.edu

paceit.missouri.edu

Principal Investigator: Greg Holliday, PhD, 573/882-8329

Public Contact: Lee Henson, Project Coordinator, 573/884-7278; Fax: 573/884-3399

Project Number: H133A011802

Start Date: November 1, 2001

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $293,183; FY 02 $290,191; FY 03 $297,480

Abstract: Preparing Avenues for Competitive Employment in Information Technology (PACE-IT)

develops a comprehensive, person-centered system that assists local students with disabilities in their

transition to professional employment in IT- related careers following graduation. The project ensures

that students with disabilities at the University of Missouri-Columbia engage in experiential opportunities in IT-related work settings with appropriate support. Participants also receive individualized

accommodations, electronic portfolios, and professional mentoring in their chosen fields to enable them

to be competitive in the IT job market upon graduation. The partnership involves university student

services; departments of state government, agencies, government officials; and area businesses (totaling

21 entities).
1-16 NIDRR Program Directory FY 2003 - Employment Outcomes

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

Arkansas

Reaching Hard of Hearing Workers in the Mainstream: Implications

for Consumers and Service Professionals

University of Arkansas

College of Education and Health Professionals

4601 West Markham Street

Little Rock, AR 72205

dwatson@uark.edu

www.uark.edu/deafrtc

Principal Investigator: Douglas Watson, PhD

Public Contact: 501/686-9691; Fax: 501/686-9698

Project Number: H133G010156

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000

Abstract: This project investigates career and work-related life experiences of persons who are hard of

hearing, including the utilization of rehabilitation services by hard of hearing individuals. Most existing

studies of this population have been limited to convenience samples, a methodological approach that is

likely to present a fragmented and potentially inaccurate picture of these workers and their VR needs.

Research with representative samples of hard-of-hearing workers is critically needed so results can be

obtained that are more valid. Additionally, the project studies the existing practices and policies used

by VR professionals as they deliver rehabilitation and employment services to hard-of-hearing adults.

These professionals can offer valuable insights into their abilities to serve this population.
NIDRR Program Directory FY 2003 - Employment Outcomes 1-17

Field-Initiated Projects (FIPs)

Illinois

Comparison of Two Employment Models for Consumers with Severe

Mental Illness

The Thresholds

4101 North Ravenswood Avenue

Chicago, IL 60613

taffy@thresholds.org

Principal Investigator: Taffy (M.L.) McCoy, PhD

Public Contact: 773/880-6260, ext. 230; Fax: 773/880-5755

Project Number: H133G990155

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $150,000; FY 00 $150,000; FY 01 $150,000; FY 02 (No-cost extension

through 7/1/2003) FY 03 (No-cost extension through 12/31/2004)

Abstract: This project conducts a randomized controlled trial comparing supported employment with

well-established, comprehensive psychiatric rehabilitation approaches. It also investigates interactions

between consumer characteristics and employment approaches, toward an understanding of the best

VR strategies for people of color, especially people from the African American community. This study

compares the effectiveness of two important, popular employment models for people with Severe

Mental Illness (SMI). The Diversified Placement Approach (DPA) offers a gradual, stepwise preparation for competitive employment, including prevocational training, agency-run business opportunities,

group placements, individual placements, and ultimately movement into independent employment, all

available on a flexible, individualized basis without fixed time limits. The second model is a supported

employment model developed in New Hampshire, known as Individual Placement and Support (IPS).

IPS is a supported employment approach for individuals with SMI. As a consumer-oriented approach,

key features of the IPS model include individualized planning with careful attention to consumer

preferences in the job matching process, close coordination between rehabilitation and treatment, and

rapid job search.
1-18 NIDRR Program Directory FY 2003 - Employment Outcomes

Field-Initiated Projects (FIPs)

Illinois

LET’S ROLL: Understanding and Responding to the Needs of People

with Disabilities and the Ticket-To-Work Program

DePaul University

College of Liberal Arts and Sciences

Psychology Department

2219 North Kenmore Avenue, Suite 420

Chicago, IL 60614

bhernan4@depaul.edu

Principal Investigator: Brigida Hernandez, PhD

Public Contact: 773/325-4840; Fax: 773/325-7888

Project Number: H133G030165

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $150,000

Abstract: The mission of the project is threefold. First, the project builds scientific knowledge regarding the needs of people with disabilities as they pertain to the Ticket to Work program and more

generally vocational rehabilitation services. Second, there is a concentrated emphasis on examining the

diversity of needs based on racial/ethnic background and type of disability. Lastly, the project aims to

understand and address the capacity of employment networks and offices of rehabilitation services in

terms of their outreach and delivery of services.
NIDRR Program Directory FY 2003 - Employment Outcomes 1-19

Field-Initiated Projects (FIPs)

Massachusetts

An Exploratory Study of the Factors Determining the Vocational

Recovery of People with Psychiatric Disabilities

Boston University

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue West

Boston, MA 02215-1303

zlatka@bu.edu

www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133G010113

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $148,989; FY 02 $149,932; FY 03 $149,865

Abstract: This project studies factors that determine the vocational recovery of persons with psychiatric disabilities. Vocational recovery is examined as an important aspect of recovery from serious mental

illness and is defined as preserving, regaining, or acquiring competitive employment despite being

affected by a disabling psychiatric condition. The project seeks to explore the major factors that promote vocational recovery from serious mental illness based on the experiences of individuals who

made the transition from severe work dysfunction, measured through the receipt of Social Security

income (SSI/SSDI), to full-time or part-time sustained competitive employment. Activities include: (1)

studying the major subjective and objective factors influencing mental health consumers’ capacity to

overcome severe work dysfunction and sustain vocational recovery; (2) studying the indicators for

consumers’ readiness for financial self-sufficiency examined as an essential factor determining vocational recovery from serious mental illness; and (3) disseminating the results of the study to various

vocational and psychosocial rehabilitation programs, self-help groups, the broad mental health community, employers, and the general public.
1-20 NIDRR Program Directory FY 2003 - Employment Outcomes

Field-Initiated Projects (FIPs)

Massachusetts

Job Retention Factors for Homeless People with Significant Disabilities

Sargent College

Boston University

635 Commonwealth Avenue

Boston, MA 02215

nhursh@bu.edu

Principal Investigator: Norman Hursh, ScD

Public Contact: 617/353-2709; Fax: 617/353-8914

Project Number: H133G020092

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $150,000; FY 03 $149,999

Abstract: This project studies the major factors that promote or limit job retention and sustained

employment for approximately 200 homeless individuals with significant disabilities who have successfully transitioned from unemployment to competitive employment and permanent housing. Unemployment rates, wage levels, benefits, and educational levels for individuals with disabilities are unacceptably low when compared to the general population and access to quality jobs with decent wages is

lower still for individuals with disabilities who are homeless, or who reside in supported or subsidized

housing. The goals of this project are: (1) to study the relationship between successful job retention and

the individual characteristics and coping strategies of homeless people with significant disabilities; (2)

to study the relationship between successful job retention and different workplace supports, program

services, and homeless resources used by homeless people with disabilities; (3) to study how specific

individual characteristics, and different workplace and program supports and resources, interact to

influence job retention and sustained employment; and (4) to disseminate results of the study to employment and vocational rehabilitation programs, homeless resources, workforce development programs, advocacy groups, and interested stakeholders.
NIDRR Program Directory FY 2003 - Employment Outcomes 1-21

Field-Initiated Projects (FIPs)

Massachusetts

Exploratory Study of the Relationship Between Stigma at the

Workplace and the Vocational Recovery of People with Psychiatric

Disabilities

Boston University

Center for Psychiatric Rehabilitation

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue

Boston, MA 02215

zlatka@bu.edu

www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133G030190

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $149,985

Abstract: The purpose of this project is to study the relationship between stigma of mental illness at

the workplace and the vocational recovery of persons with psychiatric disabilities. More specifically,

the project focuses, on one hand, on operationalizing the traumatic negative impact of stigma on mental

health consumers’ capacity to obtain and sustain competitive employment, and, on the other hand, on

the objective and subjective factors (i.e., supportive work environment, effective coping strategies, etc.)

that minimize the interference of stigma with the vocational recovery of persons with psychiatric

disabilities. In addition, the study explores the pivotal role of disclosure at the workplace in understanding the complex, multi-faceted relationship between stigma and the vocational recovery among persons

with serious mental illness whose disability is often invisible.
1-22 NIDRR Program Directory FY 2003 - Employment Outcomes

Field-Initiated Projects (FIPs)

New York

Measuring Employer Openness to Hiring People with Disabilities:

Development of Expanded Labor Market Survey

Syracuse University

Counseling and Human Services

257 Huntington Hall

Syracuse, NY 13244-2340

ddgilbri@syr.edu

soeweb.syr.edu/faculty/ddgilbri/nidrr

Principal Investigator: Dennis Gilbride, PhD

Public Contact: 315/443-5264; Fax: 315/443-5732

Project Number: H133G000028

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 00 $149,306; FY 01 $147,650; FY 02 $148,892; FY 03 (No-cost extension

through 9/30/2004)

Abstract: This project works to understand the labor market in regards to people with disabilities. The

first goal is to identify the key factors that distinguish employers that are authentically open to people

with disabilities throughout the human resource management process, including recruitment, selection,

training, supervision, accommodation, and promotion. The second goal is to develop a simple interview protocol (and supportive training materials) that rehabilitation consumers and counselors can use

as part of an enhanced labor market survey to target employers for placement, employer development,

and consulting efforts based upon that employer’s level of openness. Five objectives help to achieve

these goals: (1) develop and convene a consumer advisory panel; (2) conduct focus groups and interviews with employers in key labor markets; (3) analyze the data to identify key components of openness; (4) present the data to a consumer advisory panel and a practitioner panel to help develop enhanced labor market survey questions, protocols, and training materials; and (5) disseminate the project

results to consumers, practitioners, educators, and employees. Consumers and rehabilitation professionals can use the enhanced labor market survey to understand the openness of employers. The web and

CD-ROM versions of the labor market survey illustrate the key aspects of employer openness with

Quicktime movies of employer statements.
NIDRR Program Directory FY 2003 - Employment Outcomes 1-23

Field-Initiated Projects (FIPs)

North Carolina

Resolving ADA Employment Discrimination Charges

University of North Carolina

The Cecil G. Sheps Center for Health Services Research

101 Conner Drive

Willowcrest Building #302

UNC-CH CB#3386

Chapel Hill, NC 27599

kathyrn_moss@unc.edu

www.ADAinsights.org

Principal Investigator: Kathryn E. Moss, PhD, 919/966-6061

Public Contact: Rachel West, 919/966-9003; Fax: 919/966-1634

Project Number: H133G000132

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 00 $149,925; FY 01 $149,591; FY 02 $149,933; FY 03 (No-cost extension

through 8/31/2004)

Abstract: The project’s purpose is to assess the impact of the ADA employment discrimination service

system on the lives of people with disabilities, using data from the computerized charge data system of

the U.S. Equal Employment Opportunity Commission (EEOC). Under Title I of the Americans with

Disabilities Act (ADA), individuals who believe they have been discriminated against in employment

on the basis of a disability may file an administrative charge with either the EEOC or a state or local

Fair Employment Practice Agency (FEPA). During the statute’s first decade of operation, the EEOC

and the FEPAs have become a significant service system for people with disabilities, handling an

average of 30,000 Title I claims each year. Recently, landmark Supreme Court decisions interpreting

the ADA, the EEOC’s implementation of a new charge processing policy, and their ambitious new

mediation program have significantly changed the Title I charge process and considerably altered the

landscape in which EEOC offices and FEPAs process Title I charges. The aims of the project, therefore, are as follows: (1) to monitor the evolving implementation of Title I of the ADA by the EEOC

and the FEPAs, (2) to monitor the evolving implementation of the EEOC’s new mediation program,

and (3) to design and disseminate useful and accessible information about the Title I charge process for

people with disabilities and persons who support them.
1-24 NIDRR Program Directory FY 2003 - Employment Outcomes

Field-Initiated Projects (FIPs)

Oklahoma

Development and Distribution of an Accessible E-Learning Authoring

System Software and Model Course for Vocational Rehabilitation

Services Personnel

University of Oklahoma

National Center for Disability Education and Training

106 Constitution, Building 158

Norman, OK 73072

okbuzzard@ou.edu

Principal Investigator: Martha Buzzard; Rebecca Cook

Public Contact: 405/325-1073; Fax: 405/325-1632

Project Number: H133G030063

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 03 $149,991

Abstract: This project develops and distributes two products that improve e- learning accessibility

options and increase employment opportunities for people with severe disabilities. These products

directly benefit two groups: (1) Instructional designers, trainers in government and industry, and

educators receive an accessible e- learning authoring system. This customized authoring tool integrates

Section 508 accessibility standards into an engine that delivers multimedia content from an external

database. User-friendly templates and reusable interactive models have built- in accessibility options,

thus enabling non-programmers to develop accessible courseware with less time and expense. (2)

Vocational rehabilitation services and supported employment personnel receive The Job Development

Hour, an accessible model course on CD-ROM that teaches basic strategies of marketing and job

development for people with severe disabilities.
NIDRR Program Directory FY 2003 - Employment Outcomes 1-25

Field-Initiated Projects (FIPs)

Virginia

Strategies People with Psychiatric Disabilities Use to Maintain

Employment and Build Careers

CESSI

6858 Old Dominion Drive

Suite 200

McLean, VA 22101

mkilleen@cox.net

www.cessi.net

Principal Investigator: Mary Killeen

Public Contact: 703/619-1703; Fax: 703/619-1702

Project Number: H133G020116

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Abstract: This project investigates the strategies individuals with psychiatric disabilities use to maintain employment over time. The majority of individuals with psychiatric disabilities who are working

find their work independently, without the help of specialized employment programs. Little is known

concerning the strategies they use to maintain employment over time. Research that has focused on

psychiatric disability and employment has looked solely at those populations who are currently attending or have attended vocational rehabilitation or specialized employment programs; individuals who

have been most successful at maintaining employment have not been consulted regarding the strategies

that worked best for them. This project explores a number of domains, including: (1) coping with

stigma in the workplace, (2) managing symptoms as well as medications and their side effects, (3)

making decisions regarding disclosure of psychiatric disability in the workplace, (4) negotiating workplace accommodations, (5) developing a social support network, (6) coping with relapse or re-hospitalization with regard to employment, and (7) obtaining education or training (career development). In

addition, the project examines whether those who have found work with the help of professionals and

those who have found work independently use differing strategies to maintain employment. Researchers ascertain the prevalence of various strategies in each group as well as their importance to participants in maintaining employment over time.
1-26 NIDRR Program Directory FY 2003 - Employment Outcomes

Field-Initiated Projects (FIPs)

Virginia

Self-Employment Development for Individuals with Traumatic Brain

Injury

Brain Injury Association of America, Inc.

8201 Greensboro Drive, Suite 611

McLean, VA 22102

glauer@biausa.org

www.biausa.org

Principal Investigator: Geoffrey Lauer, 608/819-0742

Public Contact: Fax: 877/408-7804

Project Number: H133G020215

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $149,985; FY 03 $149,965

Abstract: This project creates self-employment opportunities for individuals with traumatic brain

injuries through inventive, replicable capacity building approaches coupled with high-quality and costeffective technical consultation and program redesign. The research, conducted by the Brain Injury

Association of America and The Rural Institute at the University of Montana, addresses consumer selfdetermination, staff development, dissemination, and capacity building, with significant attention to

consumer choice, minority enrollment, and local collaboration. Staff focus on systemic communitywide capacity building for self-employment, with the assistance of a broad-based culturally, geographically, and disability diverse Advisory Council. Each of the two development communities receives onsite and distance technical training and consultation on business planning, SSA Work Incentives,

financing/alternative funding, and specific supports (assistive/universal technology, self-management

regimens, etc.) for individuals with TBI. The project builds capacity with local community rehabilitation programs, VR and Work Force Investment Act offices, medical providers, families, self-advocates,

economic development entities including business incubators and Small Business Development Centers, and Tribal Business Information Centers.
NIDRR Program Directory FY 2003 - Employment Outcomes 1-27

Field-Initiated Projects (FIPs)

Virginia

Telework as an Accommodation for Employees with Disabilities:

Developing Prediction Models for Successful and Satisfying Careers

Virginia Commonwealth University

P.O. Box 980568

Richmond, VA 23284

mwest@mail1.vcu.edu

www.worksupport.com

Principal Investigator: Michael West, PhD

Public Contact: 804/828-1851; Fax: 804/828-2193

Project Number: H133G020158

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $149,998; FY 03 $149,996

Abstract: This three-year project develops research models to predict successful entry or reentry into

employment using telework options. The models include: (1) functional, demographic, and experiential

characteristics of participants; (2) telework options, such as telecenters, home-based work, and combinations of home- and office-based duties; (3) types of work performed, such as telephone or on-line

technical support, telemarketing, remote data entry, writing, reservations, etc.; (4) support and training

provided by the employer and public and private agencies; and (5) monetary factors such as earnings

and fringe benefits. “Success” is defined in terms of both sustained labor force involvement and

satisfaction with one’s job, earnings, benefits, and career path.
1-28 NIDRR Program Directory FY 2003 - Employment Outcomes

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Illinois

Piano Tuning Device for the Blind

Veritune, Inc.

5030 North Nashville Avenue

Chicago, IL 60656

dave@veritune.com

Principal Investigator: David Carpenter

Public Contact: 773/793-6530; Fax: 773/467-0444

Project Number: H133S030154

Start Date: October 1, 2003

Length: 6 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 03 $39,775

Abstract: This project explores the feasibility of an audio interface to allow blind piano technicians to

use an electronic tuning device (ETD). Currently available ETDs provide only visual interfaces, and

very little research has been done to identify an ideal audio interface for those with visual impariment.

The design of a practical piano tuning interface presents specialized challenges, including the requirements for a wide range of content at high speed. Through study with professional piano technicians,

the project determines the best approach to satisfy the unique requirements of an audio-based ETD

interface.
NIDRR Program Directory FY 2003 - Employment Outcomes 1-29

Small Business Innovative Research (SBIR), Phase I

Minnesota

Development of a Career Guidance System for Students with

Disabilities

Center for Career and Community Research

402 Dayton Avenue, #3

St. Paul, MN 55102

maryann.hanson@ccc-research.com

Principal Investigator: Mary Ann Hanson, PhD

Public Contact: 651/222-3540; Fax: 651/340-2726

Project Number: H133S030132

Start Date: October 1, 2003

Length: 6 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $72,385

Abstract: This project develops a user friendly computerized career guidance system that takes advantage of available career information, includes accurate, efficient person assessment capabilities and

state-of-the-art person-job matching features, and helps students navigate the occupational information

effectively. This system provides high quality information concerning available career options and the

ways in which students can make the most of their abilities. It is built on a foundation of innovative

basic research focused on developing unique aspects of the system, those not available in existing

occupational information systems, and those likely to be useful to individuals with disabilities. Research for this project includes development of procedures to efficiently, accurately estimate students’

abilities and procedures for matching student traits with occupational requirements.
1-30 NIDRR Program Directory FY 2003 - Employment Outcomes

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Florida

Virtual Interview Exercises for Workplace Success (VIEWS)

Vcom3D, Inc.

3452 Lake Lynda Drive, Suite 260

Orlando, FL 32817

dannyr@vcom3d.com

www.vcom3d.com

Principal Investigator: Daniel Roush

Public Contact: 407/737-7310, ext. 115; Fax: 407/737-6821

Project Number: ED-01-Q-0003 (3-7)

Start Date: September 1, 2002

Length: 24 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Abstract: This project conducts research to develop a prototype computer software program that

provides the opportunity for job seekers who are deaf or hard-of- hearing to practice employment

interviewing skills. This software incorporates SigningAvatarTMtechnology that uses 3D animated

characters who sign in variants of American Sign Language. The software presents an accessible

virtual interview scenario with interacting characters and the ability to respond to interview questions

that are asked frequently. If the user selects a certain number of the best responses to the interview

questions, the employer offers the interviewee the job. This software not only provides the opportunity

to practice interviewing skills independently, it may boost the confidence and intrinsic motivation of

the user.
Health and Function

NIDRR’s research focus for health and function addresses problems in individual

care, services, and supports for people with disabilities. Research topics include:

medical rehabilitation; health and wellness programs; service delivery; short and

long-term interventions; systems research; and new and emerging disabilities.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Disability and Rehabilitation Research Projects .................................................................................. 16

Model Burn Injury Systems ................................................................................................................ 22

Model Spinal Cord Injury Systems ..................................................................................................... 27

Model Traumatic Brain Injury Systems............................................................................................... 43

Field-Initiated Projects (FIPs) .............................................................................................................. 60

Small Business Innovative Research (SBIR), Phase I ....................................................................... 102

Small Business Innovative Research (SBIR), Phase II ...................................................................... 103

NIDRR Program Diretory FY 2003 - Health and Function 2-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center in Neuromuscular

Diseases

University of California/Davis

MED: Physical Medicine and Rehabilitation

TB 191

Davis, CA 95616-8655

nmdinfo@ucdavis.edu

www.rehabinfo.net

Principal Investigator: Craig McDonald, MD

Public Contact: Kathryn Devereaux, PhD, Training and Information Services Director, 530/752-2903

(V); Fax: 530/752-3468

Project Number: H133B980008

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $650,000; FY 99 $650,000; FY 00 $650,000; FY 01 $650,000; FY 02

$650,000; FY 03 (No-cost extension through 11/30/2003)

Abstract: This project conducts research designed to enhance the quality of life of people with neuromuscular diseases. Through multidisciplinary research and a comprehensive program of training and

information services, the Center serves consumers, physicians, and health care workers. Program areas

include: interventions to preserve functional capacity including management of weakness and respiratory insufficiency due to muscle wasting, exercise interventions, treatment of exercise related fatigue,

pain interventions, and dietary interventions; interventions to enhance community integration, including incorporating goal-based approaches to community integration, facilitation of healthy adaptation

through development of stress management and coping skills, and resource training for acquisition of

disability- related information through the Internet; ethical issues related to genetic testing; and training

and information services.
2-4 NIDRR Program Diretory FY 2003 - Health and Function

Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center in Neuromuscular

Diseases (RRTC/NMD)

University of California, Davis

Department of Physical Medicine and Rehabilitation (T1B191)

School of Medicine

1 Shields Avenue

Davis, CA 95616

nmdinfo@ucdavis.edu

www.rehabinfo.net

Principal Investigator: Craig McDonald, MD

Public Contact: Kathryn Devereaux, PhD, Training and Information Services Director, 530/752-

2903; Fax: 530/752-3468

Project Number: H133B031118

Start Date: December 1, 2003

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $800,000

Abstract: The purpose of the Rehabilitation Research and Training Center in Neuromuscular Diseases

(RRTC/NMD) is to enhance the health, function, and quality of lives of persons with neuromuscular

diseases (NMD). The goals of this project are to: (1) develop a program for multicenter rehabilitation

research in NMD through the Cooperative International Neuromuscular Research Group (CINRG);

(2) conduct research that continues to address rehabilitation needs, particularly related to exercise,

nutrition, pain, secondary conditions, and the quality of life of individuals with neuromuscular diseases; (3) develop and evaluate new or emerging technologies and interventions that provide the

information needed to improve employment, community integration, and quality of life outcomes for

this population of individuals with disabilities; (4) develop and evaluate appropriate health promotion

and wellness programs that enhance the ability of individuals with neuromuscular disease to be physically active and participate in recreational activities; and (5) conduct a comprehensive program of

training, dissemination, utilization, and technical assistance activities that are well-anchored in the

research program and address the needs of stakeholders.
NIDRR Program Diretory FY 2003 - Health and Function 2-5

Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center on Aging with a

Disability

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, 800 West Annex

Downey, CA 90242-4155

gracefg@agingwithdisability.org

www.agingwithdisability.org

Principal Investigator: Bryan J. Kemp, PhD

Public Contact: LeAnn Carrothers, PhD, Training Director, 562/401-7402; Fax: 562/401-7011

Project Number: H133B980024

Start Date: September 1, 1998

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000; FY 02

$700,000; FY 03 (No-cost extension through 8/31/2004)

Abstract: This project assists people who are aging with a disability by conducting a series of research

studies using a database of more than 1,000 people who represent a variety of disabilities (for example,

cerebral palsy, rheumatoid arthritis, stroke, SCI, polio). Research projects include: (1) the natural

course of aging with a disability, (2) assisting family caregivers of people aging with a disability, (3)

improving community integration and adjustment, (4) preventing secondary complications such as

diabetes and thyroid disorders, (5) improving bone density through a regimen of exercise and vitamins,

and (6) understanding the role of AT and environmental interventions in maintaining functional performance. Training, dissemination, and technical assistance activities focus on students and professionals

in the health, allied health, and rehabilitation fields, as well as people aging with a disability and their

families. Goals include training rehabilitation researchers knowledgeable about aging with a disability,

improving the adoption and utilization of RRTC-developed assessment and treatment regimens by

health and rehabilitation professionals, and disseminating information about aging with a disability to

people with disabilities and their families. Training and dissemination occurs through advanced and

continuing education courses; local, national, and international conferences; workshops; publications in

professional- and consumer-oriented journals; and the Internet.
2-6 NIDRR Program Diretory FY 2003 - Health and Function

Rehabilitation Research and Training Centers (RRTCs)

California

Aging-Related Changes in Impairment for Persons Living with Physical

Disabilities

Los Amigos Research & Education Institute, Inc.

7601 East Imperial Highway

800 West Annex

Downey, CA 90242

lcarrothers@agingwithdisability.org

www.agingwithdisability.org

Principal Investigator: Bryan J. Kemp, PhD

Public Contact: LeeAnn Carrothers, PhD, Training Director, 562/401-7402; Fax: 562/401-7011

Project Number: H133B031002

Start Date: August 1, 2003

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 03 $700,000

Abstract: This project is a combined effort of Rancho Los Amigos National Rehabilitation Center and

the University of California at Irvine, with other collaborators including the Center for Disability in the

Health Professions at Western University and two Rehabilitation Engineering Research Centers. This

project evolves from the fact that persons who have a disability are now living into middle age and late

life in ever-increasing numbers. However, many of these people appear to be experiencing premature

age-related changes in health and functioning. The project tests a model for improved understanding of

these problems and interventions to help alleviate them. Persons who are experiencing these kinds of

problems and their families are included in all center projects. The training, dissemination, and technical assistance activities include clinical training of current and future health providers, current and

future researchers, persons with disabilities, their families, and policy makers. Both traditional methods

of one-on-one and group training as well as technology-based distance training techniques are used to

reach national audiences and under-served poplulations.
NIDRR Program Diretory FY 2003 - Health and Function 2-7

Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

The Consortium for Children and Youth with Disabilities and Special

Health Care Needs.

Georgetown University

Center for Child and Human Development

3307 M Street Northwest, Suite 401

Washington, DC 20007

nrrtc@georgetown.edu

www.consortiumnrrtc.org

Principal Investigator: Phyllis Magrab, PhD; Larke Huang, PhD

Public Contact: Tammy Abdou, Program Coordinator, 202/687-8617 (V); 202/687-5503 (TTY);

Fax: 202/687-8899

Project Number: H133B001200

Start Date: July 1, 2000

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 00 $699,956; FY 01 $699,947; FY 02 $699,926; FY 03 $699,981

Abstract: The Consortium improves rehabilitation outcomes for children and youth with disabilities

and special health care needs by increasing the effectiveness of service system. Using an integrated,

multifaceted research approach and related training, dissemination, and technical assistance activities,

the Consortium targets five areas: (1) access issues in pediatric rehabilitation, (2) characteristics of

health plans and access to services, (3) promising practices in transition from pediatric to adult health

care, (4) effective telehealth strategies for interdisciplinary service delivery in remote areas, and (5)

training issues in Assistive Technology. Building on this research program, the consortium utilizes a

variety of strategies to provide training and technical assistance to the target audience of families,

consumers, providers, researchers, policymakers, and managed care organizations to improve rehabilitative services to this population in order to enhance their quality of life and that of their families. The

RRTC is run buy the Georgetown University’s Center for Child and Human Development in collaboration with Brandeis University’s Heller School, the University of Florida’s Institute of Child Health

Policy, and Family Voices.
2-8 NIDRR Program Diretory FY 2003 - Health and Function

Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Access to Rehabilitation and Empowerment Opportunities for Minority

Persons with Disabilities

Howard University

2900 Van Ness Street Northwest

Holy Cross, Room 100

Washington, DC 20008

swalker@howard.edu

www.law.howard.edu/HURTC/HURTC.html

Principal Investigator: Sylvia Walker, EdD

Public Contact: 202/806-8086; Fax: 202/806-8148

Project Number: H133B000903

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $600,000; FY 01 $600,000; FY 02 $600,000; FY 03 $600,000

Other funding: FY01 $39,375 (NIDRR)

Abstract: The Howard University Research and Training Center for Access to Rehabilitation and

Empowerment Opportunity (HURTC) is implementing a RRTC on Access to Rehabilitation and

Empowerment Opportunities for Minority Persons with Disabilities to help them achieve self-determination, economic independence, and full participation in American life. The program of the Center is

designed to attain the following objectives: identify methodological problems determining the rehabilitation needs of persons with disabilities from minority backgrounds (including sub-populations within

these groups) and propose strategies to address these methodological problems; based on research

findings, identify implications for rehabilitation research, training, policy development, and services;

assess the outcomes of rehabilitation for persons with disabilities from minority backgrounds as measured by two or more variables (such as functional abilities, wellness, employment, health/wellness,

and psychosocial status); analyze the affects of minority status on rehabilitation outcomes; and identify,

develop, and evaluate rehabilitation methodologies, models, and interventions for specific minority

groups. The HURTC collaborates with the Center for Disease Control, the Center for Minority Health,

and a variety of stakeholders including consumers with disabilities, state agencies, continuing education programs, and community-based organizations.
NIDRR Program Diretory FY 2003 - Health and Function 2-9

Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Stroke Rehabilitation

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611

ejr@northwestern.edu

www.rrtc-stroke.org/

Principal Investigator: Elliot J. Roth, MD, 312/238-4637

Public Contact: Linda Lovell, Project Coordinator, 312/238-6197; Fax: 312/238-6998

Project Number: H133B980021

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000; FY 01 $800,000; FY 02

$800,000; FY 03 (No-cost extension through 9/30/2004)

Abstract: This project tests the effectiveness of several stroke rehabilitation strategies and tactics,

trains stroke survivors and professionals, and disseminates knowledge relevant to stroke care. In order

to extend the knowledge base of stroke rehabilitation, produce changes in clinical practice, and enhance the quality of life of stroke survivors and their families, the Center: (1) identifies, develops, and

evaluates rehabilitation techniques in order to address coexisting and secondary conditions and improve outcomes for all stroke patients; (2) develops and evaluates standard aerobic exercise protocols;

(3) identifies and evaluates methods to identify and treat depression and other psychological problems

associated with stroke; (4) determines the effectiveness of stroke prevention education provided in a

medical rehabilitation setting; (5) evaluates the impact of changes in diagnosis and medical treatment of

stroke on rehabilitation needs; (6) evaluates long-range outcomes for stroke rehabilitation across

different treatment settings; (7) evaluates the impact of stroke practice guidelines on delivery and

outcomes of rehabilitation services; (8) provides training on new approaches, innovations, and the

specialized principles and practices of rehabilitation care of individuals with stoke; (9) provides applied

research experience and training in research principles and methods; (10) disseminates information of

new developments in the area of stroke care and research to people with stroke and their families,

rehabilitation professionals, and service providers; and (11) conducts a state-of-the-science conference.

The Center has a large database of information regarding stroke rehabilitation patients and continues

ongoing systems and activities to collect and analyze data concerning stroke impairment, disability, and

social functioning. This project participates in the NIDRR Scholars program, providing motivated

undergraduates with internship experience in disability research.
2-10 NIDRR Program Diretory FY 2003 - Health and Function

Rehabilitation Research and Training Centers (RRTCs)

Illinois

RRTC on Technology Promoting Integration for Stroke Survivors:

Overcoming Social Barriers

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611

ejr@northwestern.edu

www.rrtc-stroke.org/

Principal Investigator: Elliot J. Roth, MD, 312/238-4637

Public Contact: Linda Lovell, Project Coordinator, 312/238-6197; Fax: 312/238-6998

Project Number: H133B031127

Start Date: October 1, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $800,000

Abstract: This project develops and evaluates a sequence of robotic training and assistive devices that

are designed with the idea of promoting efficient function in the workplace or at home, and with the

further intent that they form a basis for the development of appropriate technologies to allow people

with disabilities ready access to existing facilities in the community. At each stage the project engages

engineering students as a means to provide intensive effort for development of novel designs, but also

to provide valuable opportunities for training students in the themes related to recovery of function and

community integration of people with disabilities. Other projects at this center include: the use of

emotionally expressive and narrative writing to facilitate coping and adaptation after stroke, computerized training for conversational scripts that facilitate access to the community and work force, and a

consumer-directed, dynamic assessment methodology for evaluating community living and work

participation environments and technologies for use by people who have a stroke. In addition to these

projects, the RRTC develops and evaluates a comprehensive plan for training directed to stroke survivors and their families, students, researchers, clinicians, and service providers. These approaches are

implemented through a variety of mechanisms, including continuing education courses, web-based

presentations, and intensive training in our research facilities.
NIDRR Program Diretory FY 2003 - Health and Function 2-11

Rehabilitation Research and Training Centers (RRTCs)

Maryland

Rehabilitation Research and Training Center on Secondary Prevention

Through Exercise: A Participatory Approach for People with Spinal

Cord Injury

National Rehabilitation Hospital/MedStar Research Institute

102 Irving Street, NW

Washington, DC 20010

Principal Investigator: Suzanne L. Groah, MD, 202/877-1196

Public Contact: Melinda Neri, Project Coordinator, National Rehabilitation Hospital Center for

Health and Disability Research, 1016 16th Street, NW, Suite 400, Washington, DC 20036-

5750, 202/466-0092; Fax: 202/466-1911

Project Number: H133B031114

Start Date: December 1, 2003

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 03 $800,000

Abstract: This project systematically and comprehensively addresses the role and impact of physical

activity in the prevention of secondary conditions in people with spinal cord injury (SCI). Initially, the

project establishes critical, yet- undefined physiological responses to exercise in SCI and comprehensively examines cardiovascular disease risk in individuals with SCI applying accepted guidelines used

in the able-bodied population. The project develops exercise formats specifically designed according to

severity of SCI and chronicity of SCI to address the prevention of and knowledge regarding osteoporosis and other secondary conditions. In addition, the project determines whether regular exercise

is related to fewer secondary conditions. These research findings feed into four training activities that

include a peer mentoring program for newly injured people with SCI, a consumer-driven education

curriculum for physical therapy and medical students, a state-of-science and training conference, and

the development of a virtual resource network on exercise and prevention. The RRTC is a collaborative effort of clinical and disability researchers, SCI consumer organizations, and independent living

advocates
2-12 NIDRR Program Diretory FY 2003 - Health and Function

Rehabilitation Research and Training Centers (RRTCs)

Missouri

Missouri Arthritis Rehabilitation Research and Training Center

(MARRTC)

University of Missouri

Physical Medicine and Rehabilitation

One Hospital Drive, DC330.00

Columbia, MO 65212

bakerv@health.missouri.edu

www.muhealth.org/~arthritis

Principal Investigator: Jerry C. Parker, PhD

Public Contact: Valerie Baker, 573/884-1499; Fax: 573/884-3020

Project Number: H133B031120

Start Date: October 1, 2003

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $800,000

Abstract: The purpose of the Missouri Arthritis Rehabilitation Research and Training Center

(MARRTC) is to provide leadership at the national level in support of three key objectives: to reduce

pain and disability, to improve physical fitness and quality of life, and to promote independent living

and community integration for persons with arthritis of all ages in the United States. State-of-thescience rehabilitation research addresses the needs of persons with arthritis in the following areas: (1)

home and community-based. self-management Programs, (2) benefits of exercise and Physical fitness,

and (3) technologies available to the broad populations of persons with arthritis in the environments

where they live, learn, work, and play. The MARRTC conducts training and capacity-building programs for critical stakeholders within the arthritis disability arena, including consumers, family members, service providers, and policy makers. Additionally, the MARRTC provides technical assistance

for persons with arthritis and other stakeholders in order to promote utilization of arthritis-related,

disability research. The MARRTC also provides widespread dissemination of informational materials

to persons with disabilities, their representatives, service providers, and other target audiences (e.g.,

editors and reporters).
NIDRR Program Diretory FY 2003 - Health and Function 2-13

Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center: Health and Wellness

Consortium

Oregon Health and Science University

Oregon Institute on Disability and Development

Child Development and Rehabilitation Center

707 Southwest Gaines

P.O. Box 574

Portland, OR 97207-0574

hayesl@ohsu.edu

www.healthwellness.org

Principal Investigator: Gloria Krahn, PhD, 503/494-8364

Public Contact: Laura Hammond, Interim Coordinator, 503/494-3882; Fax: 503/494- 6868

Project Number: H133B990019

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $700,000; FY 00 $700,000; FY 01 $700,000; FY 02 $700,000; FY 03

$700,000

Abstract: The Center has a comprehensive program of research, training, technical assistance, and

dissemination with primary attention given to the physical and mental aspects of health for people with

long-lasting disabilities such as cerebral palsy, SCI, multiple sclerosis, amputation, and post-polio.

Interconnected research areas include evaluating health assessment definitions, practices, policies, and

measurement, and their impact on health promotion and investigating the relationship between selected

health maintenance strategies and the incidence and severity of secondary conditions and other functional outcomes. Center projects examine the practices of exemplary generic and specialized health

promotion programs; analyze the health behaviors and related functional outcomes of individuals with

disabilities; examine the relationship between health definitions, practices, and secondary conditions to

develop a screening tool for health and wellness for people with disabilities; and investigate the association between disability and differential detection of cancer. The Center’s third area of focus centers

on identifying and evaluating best practices in health promotion. These include an Internet-delivered

reproductive health promotion package, strategies for enhancing the participation of individuals with

disabilities in self-directed physical activity, the accessibility of alcohol and drug treatment programs to

people with disabilities, and methods for culturally responsive health promotion. An additional research focus is the use and efficacy of complimentary alternative medicine among people with these

specific long- term disabilities.
2-14 NIDRR Program Diretory FY 2003 - Health and Function

Rehabilitation Research and Training Centers (RRTCs)

Texas

Rehabilitation Research and Training Center on Rehabilitation

Interventions Following Traumatic Brain Injury

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

1333 Moursund Avenue

Houston, TX 77030-3498

whigh@bcm.tmc.edu

www.braininjuryresearch.org

Principal Investigator: Walter M. High Jr., PhD

Public Contact: 713/666-9550; Fax: 713/668-5210

Project Number: H133B990014

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 99 $650,000; FY 00 $650,000; FY 01 $650,000; FY 02 $650,000; FY 03

$650,000

Abstract: The Center promotes the scientific advancement of rehabilitation research by focusing on

several areas identified as needing further research. These include areas of weakness in the current

knowledge and future research regarding TBI recovery and rehabilitation effectiveness: improvement

of the diagnosis and treatment of persons with mild TBI; development of interventions to assist schoolage children with TBI; the needs of minority groups members with TBI; evaluation of the effectiveness

of rehabilitation interventions; and treatment for the family members of people with TBI. Activities

include publishing an informational and technical assistance resource for consumers and professionals;

training for medical and neuropsychological fellows in rehabilitation research; coordinating a state-ofthe- science conference on mild TBI; and producing an educational videotape to train family members

in effective coping skills. Through representation on the advisory committees, consumers are involved

in all aspects of planning and evaluating research and training activities.
NIDRR Program Diretory FY 2003 - Health and Function 2-15

Rehabilitation Research and Training Centers (RRTCs)

Washington

Multiple Sclerosis Rehabilitation Research and Training Center

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98105

msrrtc@u.washington.edu

www.msrrtc.washington.edu

Principal Investigator: George H. Kraft, MD, 206/543-7272

Public Contact: Carolyne Dollar, 206/221-5302; Fax: 206/685-3244

Project Number: H133B031129

Start Date: October 1, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $800,000

Abstract: This center conducts rehabilitation research that: (1) Develops new interventions and

practice in the areas of disease suppression, strength enhancement, identification of medication responders, depression management, and pain control. In addition, the project develops and evaluates a

series of strategies to promote participation in desired roles, directed toward assisting individuals with

MS and their families. (2) Promotes pathways to participation utilizing survey methodology and indepth qualitative interviews to explore complex interaction among multiple variables with a modeling

of factors that predict differing levels of participation and identifying early interventions that can

improve a deteriorating course. (3) Facilitates enhanced participation through training, technical assistance, and dissemination through professional meetings, publications, and a State-of-the-Science

conference. In addition, a web-based knowledge base provides technical assistance to individuals with

MS and healthcare providers.
2-16 NIDRR Program Diretory FY 2003 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

Lifetime Outcomes and Needs: Refining the Understanding of Aging

with Spinal Cord Injury

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

susie@craighospital.org

www.craighospital.org

Principal Investigator: Daniel P. Lammertse, MD, 303/789-8220

Public Contact: Susan Charlifue, 303/789-8306; Fax: 303/789-8441

Project Number: H133A011108

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $350,000; FY 02 $350,000; FY 03 $350,000

Abstract: This project explores the incidence and prevalence of several health and psychosocial

conditions that accompany living many years with SCI. Also studied in this comprehensive, longitudinal, multicenter effort are the services available to individuals with SCI as they attempt to address these

conditions throughout their lives. The study expands the longitudinal database, addressing emerging

issues of aging with SCI in greater detail, and expands efforts to share findings with a variety of

constituents. The eight areas of focus include: (1) secondary conditions from five to 25 years postinjury, (2) new analytic techniques with longitudinal datasets, (3) chronic pain, (4) access to and

satisfaction with health services, (5) personal assistance services, (6) spirituality and its effects on

health outcomes and quality of life, (7) the role of perceived stress and self-reported problems on the

presence or absence of secondary conditions and in relation to one’s overall well-being, and (8) trends

in quality of life and health. This longitudinal study builds on two previous data collection points. It

includes a broad, comprehensive examination of secondary conditions, both physical and psychosocial, and several new areas of inquiry investigated in-depth.
NIDRR Program Diretory FY 2003 - Health and Function 2-17

Disability and Rehabilitation Research Projects

Florida

Pharmacological Management of Dyslipidemia and Cardiovascular

Disease in Persons with Chronic Cervical SCI: A Multicenter

Collaborative Trial

University of Miami

School of Medicine

1095 Northwest 14th Terrace, R48

Miami, FL 33136

msnash@miami.edu

www.miamiproject.miami.edu

Principal Investigator: Mark S. Nash, PhD, 305/243-3628

Public Contact: Maria Amadore, Directory of Education, Miami Project to Cure Paralysis, 305/243-

7108

Project Number: H133A011115

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $344,023; FY 02 $340,953; FY 03 $271,952

Abstract: This project researches strategies that reduce cardiovascular disease risks after onset of

tetraplegia by increasing high-density lipoprotein cholesterol (HDL-C) levels. The research examines

the ability of a pharmaceutical therapy to improve the lipid profiles and forestall cardiovascular disease

progression in persons with tetraplegia. Previous research on persons without SCI has shown extended-release niacin effective for elevating HDL-C, lowering total cholesterol, lowering low-density

lipoprotein cholesterol (LDL-C), lowering triglycerides, slowing cardiovascular disease progression,

and reducing cardiovascular morbidity and mortality. The ability of this drug to improve lipid profiles

has never been examined in persons with tetraplegia, although drug benefits similar to those reported in

persons without SCI would be of great health benefit to those with tetraplegia.
2-18 NIDRR Program Diretory FY 2003 - Health and Function

Disability and Rehabilitation Research Projects

Illinois

Health Services Research DRRP on Medical Rehabilitation

Northwestern University

Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611-2654

a-heinemann@northwestern.edu

www.rseu.northwestern.edu

www.northwestern.edu/ihsrps

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-4572

Project Number: H133A030807

Start Date: July 1, 2003

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 03 $300,000

Abstract: This research addresses the need to improve the delivery of health services to persons with

disabilities by (1) evaluating the impact of inpatient rehabilitation (IRF) and prospective payment

system (PPS) on access to rehabilitation services in terms of settings, services, and length of stay; and

(2) identifying the impact of comorbidities on how patients are classified and reimbursed and the new

IRF PPS. Medicare’s new PPS for IRF may limit effective access to care because facilities will take

fewer risks with patients deemed to be “high cost outliners,” hire more “therapy extenders” rather than

licensed professionals, and discharge patients at a higher rate to nursing facilities rather than to community settings. The four specific aims of the research are: (1) examine changes in the organization of

medical rehabilitation in response to prospective payment; (2) examine changes in patient access to

medical rehabilitation settings and services resulting from organizational changes and organizational

responses to the change in reimbursement; (3) examine the impact of PPS-related changes in service

delivery on patient outcomes; and (4) identify the impact of comorbidities on classification and reimbursement in medical rehabilitation PPS.
NIDRR Program Diretory FY 2003 - Health and Function 2-19

Disability and Rehabilitation Research Projects

Maryland

Medicaid Quality Indicators for Individuals with Disabilities

National Rehabilitation Hospital/MRI

102 Irving Street NW

Washington, DC 20010

susan.e.palsbo@medstar.net

www.nrhchdr.org

Principal Investigator: Susan E. Palsbo, PhD

Public Contact: 202/466-1904; Fax: 202/466-1911

Project Number: H133A030804

Start Date: July 1, 2003

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 03 $300,000

Abstract: This project develops and validates health service quality indicators for people with disabilities. The target population to be served is people with disabilities enrolled in managed Medicaid

programs. The goal is to develop and field test quality measures for people with disabilities in managed

care organizations. The specific aims are: (1) Case Identification: Improve the computer algorithm for

Medicaid plans to identify beneficiaries who have disabilities. (2) Plan-reported indicators: Select a

subset of existing HEDIS Medicaid measures that are appropriate and statistically meaningful for

indicating the quality of care for the people identified in Aim#1. (3) Consumer-reported indicators:

Assess the content validity of the Axis-CAHPS survey. (4) Develop comparative reporting tools of the

quality of care between and within health plans. This is a combined qualitative and quantitative study

with three interrelated segments. (1) Extend previous research on using routine health claims data to

identify beneficiaries who are at risk of needing modified help to access their Medicaid benefits and

services. (2) Review and refine the two most widely used Medicaid quality indicator tools, CAHPS

and HEDIS; and extend work on refining the CAHPS instrument for people with physical disabilities;

and (3) Explore how people with disabilities, payers, and providers can use the indicators to improve

practice and report outcomes using comparative reporting tools.
2-20 NIDRR Program Diretory FY 2003 - Health and Function

Disability and Rehabilitation Research Projects

New Jersey

A Multicenter Prospective Randomized Controlled Trial of the

Effectiveness of Amantadine Hydrochloride in Promoting Recovery of

Function Following Severe Traumatic Brain Injury

JFK Johnson Rehabilitation Institute

Center for Head Injuries

2048 Oak Tree Road

Edison, NJ 08820

Principal Investigator: Joseph T. Giacino, PhD

Public Contact: 732/205-1461; Fax: 732/632-1584

Project Number: H133A031713

Start Date: January 1, 2004

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 03 $599,862

Abstract: In this study, eight facilities (three of which are also Traumatic Brain Injury (TBI) Model

Systems), join with a Data Coordinating Center at Columbia University, to conduct a prospective

double blind randomized controlled trial of amantadine. More than 180 patients who remain in vegetative state (VS) or minimally conscious state (MCS) 4-16 weeks post-TBI are randomized in a stratified

fashion to 4 weeks of amantadine (200-400 mg/day) vs. placebo, followed by a 2-week washout

period. The Disability Rating Scale is the primary dependent variable with the Coma Recovery ScaleRevised serving as a supplementary measure. The project also explores whether treatment response

differs by time post-injury and by diagnosis (i.e., VS or MCS) at treatment onset, and whether specific

outcomes of importance to caregivers are achieved more often in the amantadine group.
NIDRR Program Diretory FY 2003 - Health and Function 2-21

Disability and Rehabilitation Research Projects

Pennsylvania

Collaboration of Upper Limb Pain in Spinal Cord Injury

University of Pittsburgh

7180 Highland Drive

Pittsburgh, PA 15206

boninger@pitt.edu

Principal Investigator: Michael L. Boninger, MD

Public Contact: Peter Hunt, 412/365-4850; Fax: 412/365-4858

Project Number: H133A011107

Start Date: December 1, 2001

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $349,998; FY 02 $349,950; FY 03 $349,954

Abstract: This collaborative studies project provides an opportunity to gain further insight into the

cause and prevention of upper limb repetitive strain injuries in SCI. For the approximately 200,000

individuals with SCI, upper limb pain and injury is very common; some studies find prevalence rates

above 70 percent. Prolonged wheelchair use and transfers have long been thought to cause these

repetitive strain injuries. The consequences of upper limb pain are so significant that some researchers

have suggested that damage to the upper arm may be functionally and economically equivalent to a

spinal cord injury of higher neurological level. This collaboration includes the University of Pittsburgh

Medical Center Spinal Cord Injury project, the Northern New Jersey Spinal Cord Injury System

(NNJSCIS), and the Northwest Regional Spinal Cord Injury System (NWRSCIS).
2-22 NIDRR Program Diretory FY 2003 - Health and Function

Model Burn Injury Systems Model Burn Injury Systems

Colorado

UCHSC Burn Model System Data Coordination Center (BMS/DCC)

University of Colorado Health Sciences Center

School of Medicine

Department of Preventive Medicine and Biometrics

4200 East Ninth Avenue, Box B119

Denver, CO 80262

rebecca.sloan@uchsc.edu

mama.uchsc.edu/pub/nidrr

Principal Investigator: Dennis C. Lezotte, PhD, 303/315-6873

Public Contact: Rebecca Sloan, Database Administrator, 303/315-0320; Fax: 303/315-3183

Project Number: H133A020402

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $249,997; FY 03 $249,995

Abstract: The BMS/DCC establishes a data management and analytical support facility for Burn

Model Systems clinical and outcomes research projects. Objectives include: (1) to serve the clinical,

research, and public communities to which it is responsible; (2) to serve the needs of good scientific

procedure in multi-institutional outcomes research; and (3) to support the needs for patient safety and

data confidentiality as required by Federal regulations when conducting collaborative clinical studies.

The BMS Project is structured as a set of interacting, observational, randomized, and quasi-experimental clinical studies run at different centers that share the common purpose of acquiring and disseminating knowledge about burn injury care and rehabilitation. The project offers support in four important

areas: project management, data management, analytical support, and dissemination. Support is provided in developing appropriate integrated systems to affect national data collection, project management, data coordination, technical support, collaborative clinical projects, scientific conduct, scientific

publication, and effective dissemination. The UCHSC BMS/DCC continues to accumulate and integrate a central repository of data from the Model Systems to enhance their abilities to make sentinel

statements and change the way burn injury rehabilitation is done. While the main function of the DCC

is to integrate and manage these data, it also needs to be responsive to the technical and analytical

needs of these individual clinical centers. In addition the DCC provides and coordinates statistical

support among the clinical and statistical groups from each Burn Center and is prepared to expand this

support, adding several new protocols and/or clinical studies where appropriate.
NIDRR Program Diretory FY 2003 - Health and Function 2-23

Model Burn Injury Systems

Maryland

Johns Hopkins University Burn Injury Rehabilitation Model System

(JHU-BIRMS)

Baltimore Regional Burn Center

Johns Hopkins Bayview Medical Center

4940 Eastern Avenue

Baltimore, MD 21224

jfauerba@jhmi.edu

www.jhbmc.jhu.edu/brbc/birms

Principal Investigator: James A. Fauerbach, PhD, 410/550-0894

Public Contact: Bernadette Guthrie, 410/550-5298; Fax: 410/550-8161

Project Number: H133A020101

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $298,928; FY 03 $299,995

Abstract: This project tests interventions targeting three common postburn secondary complications

affecting health and function: generalized deconditioning, muscle atrophy, and acute stress disorder.

Testing the effectiveness of these interventions holds promise for improving the health and function of

burn survivors as well as enhancing their options for workplace and community reintegration. The

JHU- BIRMS includes several projects: (1) testing the efficacy of its augmented exercise program in

rehabilitating people with generalized deconditioning, (2) testing the efficacy of enhanced cognitivebehavioral therapy in treating individuals with acute stress disorder and preventing the development of

chronic posttraumatic stress disorder, (3) developing a new measure that quantifies the degree of social

stigmatization experienced by burn survivors and its impact on emotional adjustment and integration

into the workplace and the community (this project involves the Phoenix Society, the largest foundation supporting burn survivors and their significant others), (4) a collaborative effort with the University of Washington on a workplace integration study identifying and quantifying those factors interfering with early and complete return to work, and (5) a collaborative study on health and function with

the University of Texas.
2-24 NIDRR Program Diretory FY 2003 - Health and Function

Model Burn Injury Systems

Texas

North Texas Burn Rehabilitation Model System (NTBRMS)

The University of Texas Southwestern Medical Center

Department of Physical Medicine and Rehabilitation

5323 Harry Hines Boulevard

Dallas, TX 75390-9136

radha.holavanahalli@utsouthwestern.edu

www.swmed.edu/ntbrms/welcome.htm

Principal Investigator: Karen Kowalske, 214/648-2288

Public Contact: Radha Holavanahalli, PhD, 214/648-9540; 214/648-3654; Fax: 214/648-2005

Project Number: H133A020104

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000; FY 03 $300,000

Abstract: This project conducts five research projects, two collaborative and three site-specific: (1)

barriers to return-to-work following major burn injury; (2) long-term outcome following major burn

injury; (3) outcome following deep, full- thickness hand burns; (4) the evolution over time of burnassociated neuropathy; and (5) the socioeconomic determinants of disability in individuals with burn

injury. The North Texas Burn Rehabilitation Model System (NTBRMS) is a collaboration of Parkland

Health and Hospital System (PHHS) and the University of Texas, Southwestern Medical Center

(UTSW). Collaboration occurs on many levels at the NTBRMS. Clinical collaboration is the hallmark

of the burn team, which includes individuals from several institutions who work together seamlessly, as

well as collaboration with rural care providers through rural clinics and a biannual seminar. Research

collaboration occurs locally with the surgeons and academic computing staff, and nationally with the

other model systems.
NIDRR Program Diretory FY 2003 - Health and Function 2-25

Model Burn Injury Systems

Texas

Pediatric Burn Injury Rehabilitation Model System

University of Texas Medical Branch

815 Market Street, Route 1220

Galveston, TX 77550

dherndon@utmb.edu

Principal Investigator: David Herndon, MD, 409/770-6731

Public Contact: Pat Blakeney, PhD, 409/770-6718; Fax: 409/770-6919

Project Number: H133A020102

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000; FY 03 $300,000

Abstract: This program conducts independent and multi-center projects focusing on evaluating and

improving the rehabilitation provided to the burned child, striving to decrease disability and improve

reintegration into society. The project continues longitudinal assessments of patients, expanding the

database that includes measures of cardiopulmonary function, physical growth and maturation, bone

density, range of motion, activities of daily living, scar formation, reconstructive needs, and measures

of psychosocial adjustment. This data is used to identify areas that require improvement and provide

functional outcome measures that can be used in the evaluation of treatment methods. Research activities include: (1) a multi-center project assessing the efficacy of the long-term administration of

oxandrolone in the treatment of burn injury with endpoints of improved strength, lean body mass, bone

density, and growth; (2) improving rehabilitative outcomes for children by instituting and evaluating

major modifications to current treatment for children with large burns; (3) evaluating the use of pressure garments in controlling scar following burn injury; (4) a multi-center study evaluating the relationship between treatment, injury, patient characteristics, and patient outcome in those patients sustaining

full thickness hand burns; and (5) evaluating acute stress disorder and posttraumatic stress disorder,

including its occurrence, predictive elements, and efficacy of treatment.
2-26 NIDRR Program Diretory FY 2003 - Health and Function

Model Burn Injury Systems

Washington

University of Washington Burn Injury Rehabilitation Model System

University of Washington

Department of Surgery, Division of Plastic Surgery

Harborview Medical Center

325 Ninth Avenue

Box 359796

Seattle, WA 98104

rassilon@u.washington.edu

faculty.washington.edu/engrav/index.html

Principal Investigator: Loren H. Engrav, MD, 206/731-3183

Public Contact: Adrian Nelsen, 206/731-2938; Fax: 206/731-3656

Project Number: H133A020103

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000; FY 03 $300,000

Abstract: This model system conducts five research projects: (1) A New Approach to the Etiology of

Hypertrophic Scarring: develops an increased understanding of hypertrophic scarring. (2) Effect of

Virtual Reality on Active Range-of-Motion During Physical Therapy: uses distraction via immersive

virtual reality as an adjunctive non-pharmacologic analgesic. This study tests the hypothesis that virtual

reality allows patients to tolerate greater stretching during physical therapy compared to no distraction,

and that in spite of achieving greater range-of-motion, patients still experience lower pain levels while

in virtual reality. (3) Determination of Reasons for Distress in Burn-Injured Adults: identifies reasons

behind a burn survivor’s distress at various time-points after hospital discharge. (4) Barriers for Return

to Work: identifies specific barriers to return to work for burn survivors. (5) Acute Stress Disorder

Among Burn Survivors: evaluates the effectiveness of cognitive- behavioral therapy, relative to a nondirective, supportive therapy control group, and a national comparison sample in reducing the prevalence of posttraumatic stress disorder diagnosis and symptom severity. Projects 4 and 5 are collaborative. In addition this project participates in the national database.
NIDRR Program Diretory FY 2003 - Health and Function 2-27

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Alabama

UAB Model Spinal Cord Injury Care System

University of Alabama/Birmingham

Spain Rehabilitation Center

619-19th Street South SRC 529

Birmingham, AL 35249-7330

mott@uab.edu

main.uab.edu/show.asp?durki=10712

Principal Investigator: Amie B. Jackson, MD, 205/934-3330

Public Contact: Pam Mott, 205/934-3283 (V); 205/934-4691 (TTY); Fax: 205/975-4642

Project Number: H133N000016

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $340,000; FY 01 $340,000; FY 02 $340,000; FY 03 $340,000

Abstract: The purpose of the University of Alabama at Birmingham Spinal Cord Injury Care System

(UAB-SCICS) program is to provide cutting edge, cost effective, comprehensive care from the moment of injury across the life span for persons who incur an SCI; to investigate ways of improving

aspects of that system of care through clinical research; and to disseminate project research findings to

persons with SCI, their family members, and professional care providers. UAB-SCICS includes two

research projects: (1) investigating musculoskeletal/spine changes in post-menopausal women with

SCI; and (2) completing a longitudinal investigation of the processes involved in coming to terms with

disability over the first year post-injury. UAB-SCICS maintains linkages with emergency medical

service agencies throughout the state, with state and local VR and long-term follow-up programs, with

clinically oriented research activities within the UAB-SCICS itself, with UAB’s companion Medical

RRTC on Secondary Conditions of SCI, as well as with clinical research programs being conducted at

other Model SCI Systems. The UAB-SCICS currently maintains the National Spinal Cord Injury

Statistical Center.
2-28 NIDRR Program Diretory FY 2003 - Health and Function

Model Spinal Cord Injury Systems

California

Regional Spinal Cord Injury Care System of Southern California

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, HB117

Downey, CA 90242-4155

rwaters@dhs.co.la.ca.us; rodjean@comcast.net

Principal Investigator: Robert L. Waters, MD; Adkins, Rod, PhD, 562/401-7048

Public Contact: 562/401-7161; Fax: 562/803-5623

Project Number: H133N000029

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $345,000; FY 01 $345,000; FY 02 $345,000; FY 03 $345,000

Abstract: The Regional Spinal Cord Injury Care System of Southern California’s primary mission is

to collect initial and follow-up data on persons who have sustained spinal cord injuries and submit it to

the national statistics database at the University of Alabama at Birmingham. Another component of the

project focuses on literacy in individuals with SCI. Also, the project identifies, evaluates, and eliminates environmental barriers, particularly cultural and social barriers, to enable people with SCI to

reintegrate fully into their community, and thus improve their lives. The project has been designed to

meet the needs of the approximately 75 percent minority and underserved populations that comprise its

clientele, and has samples sufficient for achieving adequate statistical power in the relevant designs and

producing meaningful research. Finally, the System contributes new and useful information to the

current collection of SCI literature. This project contributes to the national statistics database at the

University of Alabama at Birmingham.
NIDRR Program Diretory FY 2003 - Health and Function 2-29

Model Spinal Cord Injury Systems

California

Model Spinal Cord Injury System

Santa Clara Valley Medical Center (SCVMC)

Rehabilitation Research Center

751 South Bascom Avenue

San Jose, CA 95128

jerry.wright@hhs.co.scl.ca.us

www.tbi-sci.org

Principal Investigator: Tamara Bushnik, PhD, 408/793-6446

Public Contact: 408/793-6433; Fax: 408/793-6434

Project Number: H133N000007

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $340,000; FY 01 $340,000; FY 02 $340,000; FY 03 $340,000

Abstract: The system of care at the Santa Clara Valley Medical Center (SCVMC) that extends from

the scene of the accident to community reintegration has been developed through a program encompassing services, teaching and demonstration, and clinical research activities in its northern and central

California and Nevada catchment area. This effort continues to include community agency staff and

consumers and has produced a network of services addressing the needs of individuals with SCI.

Based on input from consumers and their family members, community organizations, rehabilitation

health professionals, and the rehabilitation literature, the research program studies: (1) the efficacy of

peer support, both group and one-on-one mentoring, to improve quality of life, physical and psychosocial status, and community participation and integration; (2) if a regular exercise program can improve

the above mentioned community outcomes; (3) the effect of high personal attendant turnover on the

above mentioned variables and whether an intervention can decrease that turnover and improve outcomes; and (4) the provision of SCI-specific education and whether improving knowledge improves

outcomes. This project contributes to the national statistics database at the University of Alabama at

Birmingham.
2-30 NIDRR Program Diretory FY 2003 - Health and Function

Model Spinal Cord Injury Systems

Colorado

The Rocky Mountain Regional Spinal Injury System

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

susie@craighospital.org

www.craighospital.org

Principal Investigator: Daniel P. Lammertse, MD; Gale G. Whiteneck, PhD, 303/789-8220

Public Contact: Scott Manley, EdD, 303/789-8214 (V); 303/789-8575 (TTY); Fax: 303/789-8219

Project Number: H133N000001

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $375,000; FY 01 $375,000; FY 02 $375,000; FY 03 $375,000

Abstract: The Rocky Mountain Regional Spinal Injury System emphasizes research and significant

contributions that have been made in the areas of SCI costs of care, aging, outcome assessment, high

tetraplegia, neurorehabilitative surgery, and program evaluation, as well as participation in randomized

controlled multicenter clinical trials. An integrated research agenda includes a controlled clinical trial of

therapy for shoulder pain and evaluations of longitudinal outcomes of surgery for spinal cord myelopathies, recovery from pressure sore surgery, perimenopausal symptoms and treatments in women with

SCI, the issues of women who provide assistance to a partner with SCI, and the impact of environmental barriers on the full participation in of people with SCI. The project includes two highly regarded

Level I trauma centers with specialized acute neurotrauma care facilities (St. Anthony Hospital and

Swedish Medical Center) and the rehabilitation and lifetime follow-up services of Craig Hospital.

These facilities bring together a full complement of disciplines and specialists, medically directed by

six full-time physicians specializing in SCI acute and rehabilitation management, to provide all components of a model system of care. This project contributes to the national statistics database at the University of Alabama at Birmingham.
NIDRR Program Diretory FY 2003 - Health and Function 2-31

Model Spinal Cord Injury Systems

Florida

South Florida Regional Spinal Cord Injury Model System

University of Miami

School of Medicine

P.O. Box 016960 (D-461)

Miami, FL 33101

m.sipski@miami.edu

www.miamiproject.miami.edu

Principal Investigator: Marca L. Sipski, MD, 305/243-8187

Public Contact: Shondra Young, 305/585-1327; Fax: 305/585-1340

Project Number: H133N000017

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $375,000; FY 01 $320,000; FY 02 $320,000; FY 03 $320,000

Abstract: The South Florida Spinal Cord Injury System (SFSCIS) is a cooperative effort between the

University of Miami School of Medicine, The Miami Project to Cure Paralysis, Jackson Memorial

Hospital, and the Miami VA Medical Center. The SFSCIS is a multidisciplinary system of care providing comprehensive rehabilitation services specifically designed to meet the special needs of individuals

with spinal cord injuries. The clinical components of the SFSCIS include emergency medical services,

acute care, vocational and other rehabilitation services, community and job placement, and long-term

community follow-up and health maintenance. A comprehensive prevention program is included in the

program. A significant and substantial research program focuses on the maintenance of health and

function; three clinical trials and five major research projects are included. Each of these projects

centers on studying interventions to improve outcomes in the preservation or restoration of function

following SCI. In addition to these research projects, this project contributes to the National Spinal

Cord Injury Database. A program designed for widespread dissemination of research and demonstration findings is included. In addition, culturally appropriate methods of education, training, and outreach are interwoven throughout the projects. Finally, the program includes a comprehensive evaluation program.
2-32 NIDRR Program Diretory FY 2003 - Health and Function

Model Spinal Cord Injury Systems

Georgia

Georgia Regional Spinal Cord Injury Care System

Shepherd Spinal Center, Inc.

Crawford Research Institute

2020 Peachtree Road Northwest

Atlanta, GA 30309-1465

lesley_hudson@shepherd.org

www.shepherd.org

Principal Investigator: David F. Apple, Jr., MD, 404/350-7353

Public Contact: Lesley M. Hudson, MA, Project Co-Director, 404/350-7591; Fax: 404/355-1826

Project Number: H133N000005

Start Date: September 30, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $374,992; FY 01 $374,992; FY 02 $374,992; FY 03 $374,992

Abstract: The Georgia Regional Spinal Cord Injury Care System admits approximately 200 individuals annually with acute onset paralysis secondary to spinal cord injury, and collects post-discharge data

on 600 individuals each year. Its patient population comes primarily from Georgia, the rest of the

Southeast, and the Eastern Seaboard. The continuum of care begins at injury and continues through

transport, assessment, acute care, rehabilitation, emotional adjustment, community reintegration, and

lifetime follow-up. The program is involved with site-specific research projects on incomplete spinal

cord injuries, enhanced long distance technological communications with patients, and the determination of early predictors of secondary complications. As part of the clinical research activity sponsored

by the facility’s Crawford Research Institute, the program is responsible for ongoing referrals of

individuals with acute injury, as well as long-term follow-up and data collection. This project contributes to the national Model Spinal Cord Injury System (SCIS) national database at the University of

Alabama at Birmingham.
NIDRR Program Diretory FY 2003 - Health and Function 2-33

Model Spinal Cord Injury Systems

Massachusetts

The New England Regional Spinal Cord Injury Center

Boston University Medical Center Hospital

Department of Rehabilitation Medicine

Preston F-511

732 Harrison Avenues

Boston, MA 02118-2393

jane.wierbicky@bmc.org

www.bumc.bu.edu/Departments/HomeMain.asp?DepartmentID=91

Principal Investigator: Steve Williams, MD

Public Contact: Jane Wierbicky, 617/638-7316; Fax: 617/638-7313

Project Number: H133N000024

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $374,514; FY 01 $300,000; FY 02 $300,000; FY 03 $300,000

Abstract: The New England Regional Spinal Cord Injury Center (NERSCIC) operates through a

joint partnership between the Boston Medical Center (BMC) and the Boston University School of

Public Health (BUSPH). While acute care and rehabilitation are administered at BMS, BUSPH plays

an equally important role in developing research, education, and training projects to meet the needs of

people with SCI. Additionally, NERSIC maintains a research partnership with Boston’s Spaulding

Rehabilitation Hospital. The Model SCI System includes multiple projects: (1) a pilot study on the

effects of Internet access upon the health and social interactions of people with SCI; (2) a study of

building accessibility in eastern Massachusetts; (3) the development of a consumer-rated Internet guide

based on input from individuals with SCI; (4) an employment study, providing comprehensive services

to chronically unemployed individuals with SCI; (5) a study of the relationship between pain severity

and participation in paid employment and/or education for persons with SCI; and (6) evaluation of a

pilot, Internet training program for SCI patients during acute inpatient rehabilitation. This project

contributes to the national statistics database at the University of Alabama at Birmingham. NERSCIC

also publishes a quarterly newsletter.
2-34 NIDRR Program Diretory FY 2003 - Health and Function

Model Spinal Cord Injury Systems

Michigan

University of Michigan Model Spinal Cord Injury Care System

University of Michigan

Department of Physical Medicine and Rehabilitation

300 North Ingalls, Room NI2A09

Ann Arbor, MI 48109-0491

model.sci@umich.edu

www.med.umich.edu/pmr/model_sci

Principal Investigator: Denise G. Tate, PhD; David R. Gater, MD, PhD, 734/936- 7052

Public Contact: Kathy Klykylo, MHSA, Research Associate, 734/763-0971; Fax: 734/936-5492

Project Number: H133N000009

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $320,000; FY 01 $320,000; FY 02 $320,000; FY 03 $320,000

Abstract: The University of Michigan Model Spinal Cord Injury Care System provides comprehensive care and services to both children and adults, and is the only facility in Michigan to care for

ventilator-dependent persons of all ages with SCI. The project objectives are to: (1) provide a continuum of comprehensive, multidisciplinary services for persons with SCI, from emergency medical

services to long-term community follow-up, with a focus upon maintaining health; (2) demonstrate the

effects of the continuum of comprehensive services, focusing on its efficacy in promoting employment,

health maintenance and wellness, independent living, and community reintegration; (3) conduct

significant research, using a participatory action research approach involving consumer input from

inception through implementation; (4) operate an efficient service system; and (5) develop and demonstrate methods of community outreach and education in collaboration with the Ann Arbor Center for

Independent Living (AACIL) to reach professionals, consumers, and their families in other rehabilitation facilities and Centers for Independent Living in Michigan. These objectives emphasize community

reintegration as a key outcome. The Model System is in collaboration with the AACIL, with the goal

of promoting community reintegration. This partnership ensures a coordinated approach to clinical

care, training, and research that integrates consumer empowerment with comprehensive lifelong

follow-up, bringing a consumer-professional synergy to the project that serves as an example for other

Model SCI Systems. This project contributes to the national statistics database at the University of

Alabama at Birmingham.
NIDRR Program Diretory FY 2003 - Health and Function 2-35

Model Spinal Cord Injury Systems

Missouri

Missouri Model Spinal Cord Injury System

University of Missouri/Columbia

Department of Health Psychology

One Hospital Drive, DC046.46

Columbia, MO 65212

nossamanl@health.missouri.edu

www.hsc.missouri.edu/~momscis

Principal Investigator: Kristofer Hagglund, PhD, 573/884-1688

Public Contact: Larry Nossaman, 573/884-2899 (V); 573/882-7971 (TTY); Fax: 573/884-4936

Project Number: H133N000012

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $300,000; FY 01 $300,000; FY 02 $300,000; FY 03 $300,000

Abstract: The Missouri Model Spinal Cord Injury System is committed to developing, implementing,

and evaluating innovative research that promotes independent living and community integration among

persons with spinal cord dysfunction. The two studies focus on the effect of a consumer-directed

personal assistance services training intervention on consumer satisfaction, independent living, and

community integration. The purpose of Study 1 is to develop, implement, and evaluate the in- person

Individualized Management of Personal Assistant/Consumer Teams (IMPACT) workshop. The

purpose of Study 2 is to assess whether this workshop can be implemented as effectively via video

teleconferencing as in person, thereby increasing dramatically its dissemination potential. The objectives of the studies are: (1) to determine the effect of the IMPACT workshop on consumer satisfaction,

the incidence of secondary conditions, activity, and participation (as defined by the ICIDH-2); (2) to

determine the effect of the IMPACT workshop on personal assistant’s job satisfaction, job stress, and

attrition; (3) to test for differences in outcomes between the participants who attended the workshop inperson and those who attend the workshop via video teleconferencing; and (4) to develop, evaluate,

and refine a web version of the interactive IMPACT workshop. Data from this research provides

valuable information for future studies seeking to document changes in personal independence and

community integration. This project contributes to the national statistics database at the University of

Alabama at Birmingham.
2-36 NIDRR Program Diretory FY 2003 - Health and Function

Model Spinal Cord Injury Systems

New Jersey

Northern New Jersey Spinal Cord Injury System

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052-1499

dtulsky@kmrrec.org

www.kmrrec.org/KM/nnjscis/index.php3

Principal Investigator: David Tulsky, PhD, 973/243-6849

Public Contact: Sofia Villalovs, 973/243-6977; 973/243-6916; Fax: 973/243-3527

Project Number: H133N000022

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $345,000; FY 01 $344,724; FY 02 $345,000; FY 03 $345,000

Abstract: The Northern New Jersey Spinal Cord Injury System (NNJSCIS) attempts to improve

outcomes for persons with SCI through novel interventions and expanded service delivery options.

The NNJSCIS is composed of Kessler Medical Rehabilitation Research and Education Corporation,

Kessler Institute for Rehabilitation, and University of Medicine and Dentistry of New Jersey-University Hospital. The NNJSCIS has an interdisciplinary system of rehabilitation care specifically designed

to meet the needs of individuals with SCI. It includes emergency medical services; acute care; psychological, social, and vocational services; peer support; independent living services; community and job

placement, long-term community follow-up; and health maintenance. Some of the research and demonstration projects target three of the most common secondary conditions (pressure ulcers, shoulder

pain, and urinary tract infections). Other studies promote wellness by reducing obesity, examine the

relation between health literacy and outcomes, and identify risk factors and prevent potential problems.

One project operationalizes the newly developed Clinical Practice Guidelines. The NNJSCIS contributes to the National Statistics Data Center.
NIDRR Program Diretory FY 2003 - Health and Function 2-37

Model Spinal Cord Injury Systems

New York

Mount Sinai Spinal Cord Injury Model System

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

One Gustave L. Levy Place

Box 1240

New York, NY 10029-6574

marcel.dijkers@mssm.edu

www.mssm.edu/rehab/spinal

Principal Investigator: Kristian T. Ragnarsson, MD

Public Contact: Marcel Dijkers, PhD, 212/659-9340; Fax: 212/348-5901

Project Number: H133N000027

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $320,000; FY 01 $320,000; FY 02 $320,000; FY 03 $320,000

Abstract: The Mount Sinai Spinal Cord Injury Model System (MS-SCI-MS) of the Department of

Rehabilitation Medicine of Sinai Hospital (MSH) and the Mount Sinai School of Medicine (MSSM) in

New York City provides comprehensive care to meet the diverse needs of persons with SCI in its

catchment area. There are four components of the system: (1) comprehensive clinical care; (2) research

(both center-specific research and contributions to the national statistics database); (3) dissemination,

education, and training; and (4) injury prevention. The comprehensive clinical program stresses interdisciplinary care, and employs a primary team model to enhance coordination among caregivers.

Comprehensive outpatient rehabilitation services and long-term follow-up at MSH are also included.

Rehabilitation services include an evaluation program for a high-tech wheelchair and seating system, a

lower-extremity functional electrical stimulation ergometry program, psychosocial services, extensive

VR services, a consumer-directed program to promote community reintegration (DO IT!), and a

women’s peer group. Specialty medical and surgical services include a fertility program for males with

ejaculatory dysfunction, intrathecal pumps for treatment of spasticity, upper extremity reconstruction,

and cutting-edge technology. A preventive health care demonstration project for screening and early

intervention of secondary medical conditions is included as a collaborative effort of the MS-SCI-MS

and the Spinal Cord Damage Research Center at the Bronx Veterans Affairs Medical Center. The

research program of MS-SCI-MS consists of two studies relevant to one of the most disabling secondary conditions of SCI, chronic pain: (1) meta-analyses of pain reports and pain treatments; and (2) a

prospective study of pain. This project contributes to the national statistics database at the University of

Alabama at Birmingham.
2-38 NIDRR Program Diretory FY 2003 - Health and Function

Model Spinal Cord Injury Systems

Pennsylvania

Demonstration of a Model Spinal Cord Injury System Center

Thomas Jefferson University Hospital

Jefferson Medical College

132 South 10th Street

375 Main Building

Philadelphia, PA 19107-5244

mary.patrick@jefferson.edu

www.spinalcordcenter.org

Principal Investigator: John F. Ditunno, Jr., MD, 215/955-5580

Public Contact: Mary Patrick, 215/955-6579; Fax: 215/955-5152

Project Number: H133N000023

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $370,000; FY 01 $370,000; FY 02 $370,000; FY 03 $370,000

Abstract: The Regional Spinal Cord Injury Center of Delaware Valley (RSCICDV) is a comprehensive program of coordinated patient care, education, and research activities. The RSCICDV: (1)

conducts on-site research focusing on improved outcome measures to meet Federally established

objectives; (2) refines and improves the RSCICDV’s operational services and demonstration projects;

and (3) conducts four development projects including development of an SCI web site, implementation

of an SCI Care Path, development of a Pressure Sore Program, and employing persons with SCI

through hireAbility. The on-site research includes four experiments: (1) validation of the Walking

Index of Spinal Cord Injury (WISCI) scale in a clinical setting for severity and hierarchical ranking; (2)

validation of WISCI scale for elements of a disability measure for distance, speed, and endurance into

WISCI levels; (3) demonstration that the WISCI scale is responsive to change in a clinical trial setting;

and (4) demonstration of consumer preference for walking. The four development projects include: (1)

improved access to information via the web site; (2) implementation of a critical pathway for more

efficient heathcare delivery; (3) increased employment and advancement of employment through

hireAbility; and (4) increased monitoring of pressure sores and strategies for prevention. This project

contributes to the national statistics database at the University of Alabama at Birmingham.
NIDRR Program Diretory FY 2003 - Health and Function 2-39

Model Spinal Cord Injury Systems

Pennsylvania

University of Pittsburgh Model Center on Spinal Cord Injury

University of Pittsburgh

7180 Highland Drive, 151R-1

Pittsburgh, PA 15206

boninger@pitt.edu

www.upmc-sci.org

Principal Investigator: Michael L. Boninger, MD, 412/365-4861

Public Contact: Fax: 412/365-4858

Project Number: H133N000019

Start Date: December 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $320,000; FY 01 $320,000; FY 02 $320,000; FY 03 $320,000

Abstract: The University of Pittsburgh Model Center on Spinal Cord Injury (UPMC-SCI) represents

the efforts of dedicated consumers, clinicians, and researchers. The UPMC-SCI’s research focus is on

innovations in AT. The research projects evaluate the impact of selected innovations in technology on

service delivery and on outcomes such as function, independence, and employment. One project is

addressing a shortcoming in AT research through the use of a new dynamic outcome measure developed by David Gray PhD. Researchers are also testing an innovative pushrim-activated, powerassisted wheelchair that has great potential to improve mobility for individuals with tetraplegia. An

additional project is investigating the impact of a new mobility device known as IBOT, which is

capable of balancing on two wheels, climbing curbs, and going over uneven terrain. This represents

the first study of the IBOT in a real world environment. In addition to this research, the center provides

a model of care for individuals with SCI. SCI care at the University of Pittsburgh is provided in a

multidisciplinary manner with a high level of communication among the constituent services. The fully

implemented system of continuity of treatment begins with the emergency response at the scene of

injury and continues with comprehensive treatment and rehabilitation from medical/surgical- to acutestage rehabilitation through utilization of AT services and VR.
2-40 NIDRR Program Diretory FY 2003 - Health and Function

Model Spinal Cord Injury Systems

Texas

Texas Model Spinal Cord Injury System

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Street

Houston, TX 77030-3408

khart@bcm.tmc.edu

www.bcm.tmc.edu/pm&r/sci/research/modelsystem

Principal Investigator: William H. Donovan, MD, 713/797-5912

Public Contact: Karen A. Hart, PhD, 713/797-5946 (V); 713/797-5790 (TTY); Fax: 713/797-5982

Project Number: H133N000004

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $330,000; FY 01 $330,000; FY 02 $330,000; FY 03 $330,000

Abstract: The Texas Model Spinal Cord Injury System (TMSCIS) provides services along the entire

continuum of care from emergency medical service to long-term follow- up and management of

secondary conditions. TMSCIS performs an analytic longitudinal investigation of disability models to

explore and quantify the interaction among various individual and environmental variables. TMSCIS

operationalizes the Institute of Medicine model of disability utilizing state-of-the-art measurement

techniques and comprehensive statistical approaches to test hypotheses about dynamic interrelations of

persons with SCI and their environment. This investigation involves following newly injured persons

with SCI for two years after injury. Measurements are taken of pre- injury life conditions, enabling

processes, as well as personal, psychological, and physical environments. This project contributes to

the national statistics database at the University of Alabama at Birmingham. In addition, the project

develops and tests theoretically derived structural models from the national database and other existing

data sources.
NIDRR Program Diretory FY 2003 - Health and Function 2-41

Model Spinal Cord Injury Systems

Virginia

VCU Model Spinal Cord Injury Center

Virginia Commonwealth University

School of Medicine

Department of Physical Medicine and Rehabilitation

Box 980661

Richmond, VA 23298-0661

wmckinle@hsc.vcu.edu

www.sci.pmr.vcu.edu/

Principal Investigator: William O. McKinley, MD; David X. Cifu, MD, 804/828-0861

Public Contact: Michelle Meade, 804/828-0955; Fax: 804/828-5704

Project Number: H133N000015

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $310,000; FY 01 $310,000; FY 02 $310,000; FY 03 $310,000

Abstract: This project develops and implements a Model Spinal Cord Injury System at Virginia

Commonwealth University/Medical College of Virginia (VCU/MCV), with a concentrated emphasis

on employment. Researchers monitor and assess the impact of interventions, advancing technology,

and policy changes on employment following SCI. Collaborating partners include VCU/MCV’s

Rehabilitation Research and Training Center on Workplace Supports, the Virginia Department of

Rehabilitation Services, and the other SCI Model Systems delivery of care. Additionally, the project

partners with the Mid- Atlantic Paralyzed Veterans Association in several training, dissemination, and

other mutual outreach activities. Research studies involve use of the national statistics database, a major

employment policy study across 18 states, a major study with the Virginia Department of Rehabilitation Services on employment outcomes (e.g., earning histories), and an evaluation of technology

training on employment outcomes. Involvement of SCI mentors in training new vocational mentors

with SCI is also an important component of the work. This project contributes to the national statistics

database at the University of Alabama at Birmingham.
2-42 NIDRR Program Diretory FY 2003 - Health and Function

Model Spinal Cord Injury Systems

Washington

Northwest Regional Spinal Cord Injury System

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98105-6613

scirehab@u.washington.edu

depts.washington.edu/rehab/sci

Principal Investigator: Diana D. Cardenas, MD; Charles Bombardier, PhD, 206/543- 8171

Public Contact: Cynthia Salzman, 206/685-3999; Fax: 206/685-3244

Project Number: H133N000003

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $330,000; FY 01 $330,000; FY 02 $330,000; FY 03 $330,000

Abstract: The University of Washington’s Northwest Regional Spinal Cord Injury System

(NWRSCIS) serves a critical mass of patients with SCI and has all the necessary disciplines to provide

state-of-the-art medical, surgical, and rehabilitation care. NWRSCIS has four objectives: (1) examine

interventions to improve outcomes in the preservation or restoration of function or the prevention and

treatment of secondary conditions; (2) contribute to the national database; (3) maintain specialized

clinical programs; and (4) develop and maintain education programs for consumers and families,

especially for those who belong to minority and disadvantaged groups. In addition, the Center provides

for the widespread dissemination of research and demonstration findings through its publications and

web site. This project contributes to the national statistics database at the University of Alabama at

Birmingham.
NIDRR Program Diretory FY 2003 - Health and Function 2-43

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Alabama

UAB TBI Model System

University of Alabama/Birmingham

Spain Rehabilitation Center

Physical Medicine and Rehabilitation

619 - 19th Street South, SRC529

Birmingham, AL 35249-7330

novak@uab.edu

www.uab.edu/tbi

Principal Investigator: Thomas A. Novack, PhD

Public Contact: 205/934-3454, or 205/934-3283

Project Number: H133A020509

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding:3 : FY 02 $365,000; FY 03 $365,000

Abstract: The University of Alabama at Birmingham (UAB) is maintaining and further developing a

Traumatic Brain Injury Model System (TBIMS) that improves rehabilitation services and outcomes for

persons with TBI.This project provides a multidisciplinary system of rehabilitation care specifically

designed to meet the needs of individuals with TBI, and, as demonstrated over the past four years as a

TBIMS, adequately enrolls subjects to complete research projects successfully. In addition to contributing data to the TBI National Database, the UAB TBIMS conducts two research projects: (1) an

examination of the use of a serotonin agonist medication (sertraline) to lessen the incidence and severity of depression during the first year of recovery following TBI. (2) a study of the impact of a training

program in problems solving for caregivers.
2-44 NIDRR Program Diretory FY 2003 - Health and Function

Model Traumatic Brain Injury Systems

California

Northern California Traumatic Brain Injury Model System of Care

Santa Clara Valley Medical Center (SCVMC)

Rehabilitation Research Center

751 South Bascom Avenue

San Jose, CA 95128

jerry.wright@hhs.co.scl.ca.us

www.tbi-sci.org

Principal Investigator: Tamara Bushnik, PhD

Public Contact: 408/793-6433; Fax: 408/793-6434

Project Number: H133A020524

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $364,038; FY 03 $364,588

Abstract: This project conducts two studies to better characterize the type and impact of fatigue on the

TBI population: (1) a cross-sectional study of people up to ten years post-TBI and (2) a longitudinal

study that focuses on the evolution of fatigue over the first two years post-injury. Both studies utilize

standardized measurements of fatigue, as well as those for depression/affective disorders, sleep disturbance, activity scales, and measurements of hormone levels reflective of the health of the neuroendocrine system. Two additional studies characterize the impact of late posttraumatic seizures on recovery:

(1) a study utilizing data already in the TBIMS National Database that compares the functional, vocational, and medical complication outcomes of those with and without late posttraumatic seizures; (2) a

study in collaboration with Denver Hospital Medical Center that interviews individuals at both sites

who participated in a previously funded NIDRR grant on seizure risk identification. This study further

evaluates barriers to the environment, transportation, and challenges in control of their seizures.
NIDRR Program Diretory FY 2003 - Health and Function 2-45

Model Traumatic Brain Injury Systems

Colorado

The Rocky Mountain Regional Brain Injury System (RMRBIS)

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

charrison-felix@craighospital.org

www.craighospital.org

Principal Investigator: Gale G. Whiteneck, PhD, 303/789-8204

Public Contact: Cynthia Harrison-Felix, PhD, 303/789-8565; Fax: 303/789-8441

Project Number: H133A020510

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000

Abstract: The Rocky Mountain Regional Brain Injury System (RMRBIS) conducts three research

projects: Study 1 examines the effects of Modafinil on fatigue and excessive sleepiness after TBI.

Study 2 assesses the effectiveness of a group therapy intervention for social pragmatic communication.

Study 3 uses the unique database assets of Craig Hospital and investigates the environmental and

clinical factors that influence outcome over a 40 year time frame to understand the process of living

and aging with a TBI. In addition to clinical research and service, Craig Hospital, as the RMRBIS,

documents an outstanding record of dissemination, for all customers including clinical consumers,

community agencies and advocacy groups, other clinical service centers and systems, and professionals engaged in the treatment of persons with TBI.
2-46 NIDRR Program Diretory FY 2003 - Health and Function

Model Traumatic Brain Injury Systems

Massachusetts

The Spaulding/Partners TBI Model System at Harvard Medical School

Spaulding Rehabilitation Hospital

125 Nashua Street

Boston, MA 02114

toneilpi@lynx.dac.neu.edu

spauldingrehab.org/home/ed_research/index.htm

Principal Investigator: Mel B. Glenn, MD, 617/573-2625

Public Contact: Therese O’Neil-Pirozzi, ScD, 617/573-2456; Fax: 617/573-2469

Project Number: H133A020513

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000

Abstract: The Spaulding TBI Model System (TBIMS) provides a comprehensive spectrum of care for

people with TBI through the collaborative efforts of three hospitals that are part of Partners Health

Care System, Inc., and four organizations that operate a variety of postacute rehabilitation programs.

Research at the center includes development of functional neuroimaging as a tool to guide cognitive

rehabilitation treatment for people with TBI, and use of functional magnetic resonance imaging

(fMRI), with both a cross-sectional and longitudinal component. The cross- sectional component

assesses regional brain activation during the memorization of word lists, both under undirected (spontaneous) conditions and following training and cueing to use a categorization strategy. The longitudinal

component studies the ability of the fMRI findings to predict outcome among people with TBI who

participate in community integration program with a cognitive rehabilitation focus.
NIDRR Program Diretory FY 2003 - Health and Function 2-47

Model Traumatic Brain Injury Systems

Michigan

Southeastern Michigan Traumatic Brain Injury System (SEMTBIS)

Wayne State University and Rehabilitation Institute of Michigan

Department of Physical Medicine and Rehabilitation

261 Mack Boulevard

Detroit, MI 48201

rhanks@dmc.org

www.semtbis.org

Principal Investigator: Robin A. Hanks, PhD, 313/745-9763

Public Contact: Deborah Wood, 313/745-1188; Fax: 313/966-7502

Project Number: H133A020515

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $364,996; FY 03 $364,995

Abstract: The Southeastern Michigan Tramatic Brain Injury System (SEMTBIS) program conducts

projects developed with the help of SEMTBIS consumers, as well as other members of the Detroit

community. Three studies evaluate: (1) a peer-mentoring intervention, (2) a dynamic system of survivor and significant-other well-being, and (3) resumption of driving after brain injury. Study 1 is a

randomized controlled trial of a peer-mentoring program for both survivors and their caregivers. Study

2 studies 250 community-dwelling adults with TBI and their caregivers/significant others, exploring

the relationship of survivor-caregiver situations with survivor distress and family dysfunction. It also

studies whether or not social support acts as a moderating influence upon the well-being of persons

with TBI. Study 3 examines correlates of driving after brain injury: barriers, fitness to drive, and

community rapport. Participatory action is a central component of project implementation, evaluation,

and dissemination. SEMTBIS participates in clinical and systems analysis studies of the TBI Model

Systems by collecting and contributing data to the uniform, standardized national database.
2-48 NIDRR Program Diretory FY 2003 - Health and Function

Model Traumatic Brain Injury Systems

Minnesota

Mayo Clinic Traumatic Brain Injury Model System

Mayo Medical Center

200 First Street

Rochester, MN 55905

malec.james@mayo.edu

www.mayo.edu/model-system

Principal Investigator: James F. Malec, PhD

Public Contact: Anne Moessner, 507/255-3116; Fax: 507/255-7696

Project Number: H133A020507

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 02 $364,891; FY 03 $364,738

Abstract: This Traumatic Brain Injury Model System (TBIMS) focuses on three local research

projects: (1) decision-making and outcomes of inpatient and outpatient rehabilitation pathways, (2)

very-long-term (5-15+ years postinjury) process and outcome for people with TBI, identified through

the Rochester Epidemiology Project, and (3) telehealth-based (Internet) cognitive rehabilitation.

Telehealth is a potentially important innovation in this system’s region, where distance limits access to

medical and rehabilitation services and many consumers have limited access to health care, insurance,

employment, and viable political representation. In addition to professional publications and presentations, continuing dissemination efforts include the Mayo Clinic TBIMS web-site, the TBI Hotline, the

Messenger newsletter, contributions to the COMBI web site and COMBI and TBIMS newsletters, and

regular participation by Mayo Clinic TBIMS staff at all annual state BIA meetings in the extended

five-state geographical region. During the next five years, the project plans to develop an advocacy

training program to help people with TBI and their families and significant others in the region learn

self-advocacy skills. Members of the Mayo TBI Regional Advisory Council were proactively involved

in developing this project.
NIDRR Program Diretory FY 2003 - Health and Function 2-49

Model Traumatic Brain Injury Systems

Mississippi

Traumatic Brain Injury Model System of Mississippi (TBIMSM)

Methodist Rehabilitation Center

Brain Injury Program

1350 East Woodrow Wilson Center

Jackson, MS 39216

marks@mmrcrehab.org

www.mmrcrehab.org

Principal Investigator: Mark Sherer, PhD

Public Contact: 601/364-3448; Fax: 601/364-3558

Project Number: H133A020514

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000

Abstract: The TBI Model System of Mississippi (TBIMSM) is a collaborative project of Methodist

Rehabilitation Center and the University of Mississippi Medical Center. This project involves three

studies. The first study investigates two medications in a parallel group, double blind, placebo controlled, randomized assignment design. The drugs under investigation have differing neurotransmitter

effects, although each drug has been reported to have therapeutic benefit. The target population for this

study is persons with TBI who are in a state of posttraumatic confusional state (PCS). This is considered a state of the art approach to PCS given the severe lack of controlled research to measure medication usage in PCS. The second study develops and conducts a trial of an intervention to improve the

therapeutic alliances between persons with TBI and family members and professional staff serving

persons with TBI in a post-acute brain injury neurorehabilitation program (PABIR). The third research

project investigates the use of transcranial magnetic stimulation (TMS) to improve the characterization

of motor disorders after TBI. Current research suggests that improved use and better understanding of

TMS technology will lead to new intervention trials to improve motor function after TBI.
2-50 NIDRR Program Diretory FY 2003 - Health and Function

Model Traumatic Brain Injury Systems

New Jersey

JFK-Johnson Rehabilitation Institute TBI Model System

JFK Johnson Rehabilitation Institute

2048 Oak Tree Road

Edison, NJ 08820

kcicerone@solarishs.org

www.njrehab.org/tbims

Principal Investigator: Keith D. Cicerone, PhD

Public Contact: 732/906-2640; Fax: 732/906-9241

Project Number: H133A020518

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000

Abstract: This project implements and evaluates innovative rehabilitation interventions that address

the spectrum of severity and needs of persons with TBI. The first research study investigates the

relationship between neurobehavioral (i.e., standardized rating scale) and neurophysiologic (i.e.,

functional MRI data) indices of brain function in persons with traumatic minimally conscious state

(MCS). The second study addresses current clinical and methodological concerns over the effectiveness of cognitive rehabilitation on cognitive functioning, community integration and social participation, return to school and work, and quality of life after traumatic brain injury. The third study uses

qualitative inquiry to describe the quality of life after TBI from the perspective of persons at various

stages after their injuries. These findings are triangulated with quantitative indices of community

integration and satisfaction with functioning, which should provide a richer and more authentic understanding of what it takes to live a fulfilling life after traumatic brain injury.
NIDRR Program Diretory FY 2003 - Health and Function 2-51

Model Traumatic Brain Injury Systems

New York

New York Traumatic Brain Injury Model System (NYTBIMS)

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

Research and Training Center

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

www.mssm.edu/nytbims

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372; Fax: 212/241-0137

Project Number: H133A020501

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000

Abstract: This project advances the understanding of TBI and its consequences and improves rehabilitation outcomes. The research projects focus on depression and fatigue, impairments that limit

participation in community, and vocational activities: Treatment of Post-TBI Depression is a randomized clinical trial to examine the efficacy of sertraline (Zoloft) in the treatment of depression and

anxiety after traumatic brain injury. Study of Post-TBI Fatigue and its Treatment investigates the

components, consequences, and correlates of post-TBI fatigue, and in a randomized clinical trial,

evaluates the benefits of modafenil (Provigil) to treat fatigue in individuals with TBI.
2-52 NIDRR Program Diretory FY 2003 - Health and Function

Model Traumatic Brain Injury Systems

North Carolina

Carolinas Traumatic Brain Injury Rehabilitation and Research System

(CTBIRRS)

Charlotte Mecklenburg Hospital Authority

Charlotte Institute of Rehabilitation

1100 Blythe Boulevard

Charlotte, NC 28203

fhammond@carolinas.org

www.carolinas.org

Principal Investigator: Flora M. Hammond, MD

Public Contact: 704/355-4330; Fax: 704/355-0709

Project Number: H133A020522

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000

Abstract: This project investigates posttraumatic irritability, its relationship to the caregiver as a

component of the environment, the reaction to amantadine hydrochloride, and the nature of the problem as experienced by those in the community. The mission of CTBIRRS is to improve care and

outcomes for survivors of TBI through medical treatments, services, research, and dissemination to

expand and enhance services throughout their lifetime. The system begins with prevention and emergency medical services and extends through intensive care, acute care, and comprehensive medical

rehabilitation to long-term follow-up, community reintegration, and vocational rehabilitation.
NIDRR Program Diretory FY 2003 - Health and Function 2-53

Model Traumatic Brain Injury Systems

Ohio

Ohio Regional TBI Model System

Ohio Valley Center for Brain Injury Prevention and Rehabilitation

Department of Physical Medicine and Rehabilitation

Ohio State University

Dodd Hall

480 West Ninth Avenue

Columbus, OH 43210

lamb-hart.1@osu.edu

www.ohiovalley.org

Principal Investigator: John D. Corrigan, PhD, 614/293-3830

Public Contact: Gary Lamb-Hart, 614/293-3802; Fax: 614/293-8886

Project Number: H133A020503

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $365,000; FY 03 $364,995

Abstract: This model system includes two local research projects on substance abuse and persons

with TBI. Study 1 is a randomized clinical trial testing interventions to promote retention in substance

abuse treatment. This study employs intervention strategies found effective for clients with TBI when

first engaging with a treatment program. Study 2 tests the concurrent validity of an instrument that

documents the extent of a person’s prior history of TBI objectively. This instrument is intended for

research on TBI as a mediating factor in substance abuse treatment. This model system utilizes innovative community integration programs: Team Brain Injury (follow-up case management), the TBI

Network (substance abuse treatment), and Community Capacity Building (education and advocacy

operated in conjunction with the Brain Injury Association of Ohio).
2-54 NIDRR Program Diretory FY 2003 - Health and Function

Model Traumatic Brain Injury Systems

Oregon

Oregon Traumatic Brain Injury Model System

Oregon Health and Science University

3181 Southwest Sam Jackson Park Road, B1CC

Portland, OR 97201-3098

carneyn@ohsu.edu

www.ohsu.edu/som-ntrg/neurotrauma/otbims.html

Principal Investigator: Nancy Carney, PhD

Public Contact: 503/494-0663; Fax: 503/494-4551

Project Number: H133A980027

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01 $345,000; FY 02 (Nocost extension through 9/30/2003) FY 03 (No-cost extension through 12/30/2003)

Abstract: This model system compares treatment and outcomes among people with TBI cared for

within the model system versus those who follow alternative care paths. The sample: (1) includes

trauma system patients who remain in Portland and those who return to rural homes after discharge,

allowing for a comparison of care paths as determined by environment; (2) assesses outcomes based on

the type and extent of care by evaluating payer programs by level and type of funding; and (3) develops and validates two key predictors of outcome: a measure of acute care and a social adjustment scale.

This understanding of outcomes as determined by care path (model versus alternative), environment

(rural versus urban), and payer program (level of funding) is used to address the three primary needs of

Oregon residents with TBI and their families: information, access, and quality. Ancillary demonstration

projects implement and evaluate caregiver training and home-based multidisciplinary rehabilitation as

an alternative to postacute treatment interventions. This project contributes to the national statistics

database at the Kessler Medical Rehabilitation Research and Education Corporation.
NIDRR Program Diretory FY 2003 - Health and Function 2-55

Model Traumatic Brain Injury Systems

Pennsylvania

The Moss Traumatic Brain Injury Model System

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

1200 West Tabor Road, Korman Suite 213

Philadelphia, PA 19141

thart@einstein.edu

www.einstein.edu/e3front.dll?durki=8108

Principal Investigator: Tessa Hart, PhD

Public Contact: 215/456-6544; Fax: 215/456-5926

Project Number: H133A020505

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000

Abstract: This project provides cutting-edge care for persons with TBI, conducts research on treatment of TBI in three key areas, and disseminates new knowledge to consumer and professional audiences, using an extensive collaborative network. Seven Trauma Centers and two nationally renowned

rehabilitation facilities, MossRehab and Magee Rehabilitation, collaborate in the clinical component of

the Moss Traumatic Brain Injury Model System. The Moss Rehabilitation Research Institute administers the research component, which includes collaborative longitudinal data collection, as well as three

local research projects on: (1) the use of assistive technology for cognitive and behavioral disabilities,

(2) validation of an observational rating scale of attention dysfunction in a psychostimulant treatment

trial, and (3) use of botulinum toxin for treating severe spasticity caused by TBI. The Moss TBIMS

emphasizes consumer involvement in clinical program improvement, research design, and dissemination via collaboration with the Brain Injury Association of Pennsylvania and other consumers.
2-56 NIDRR Program Diretory FY 2003 - Health and Function

Model Traumatic Brain Injury Systems

Pennsylvania

University of Pittsburgh Brain Injury Model System (UPBI)

University of Pittsburgh

3471 Fifth Avenue

Suite 201 Kaufmann Building

Pittsburgh, PA 15213

zafonterd@msx.upmc.edu

Principal Investigator: Ross D. Zafonte, DO

Public Contact: 412/648-6979; Fax: 412/692-4410

Project Number: H133A020502

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 02 $364,484; FY 03 $360,375

Abstract: The research focus of the University of Pittsburgh Brain Injury Model System is on innovation in rehabilitation technology for persons with TBI. The project evaluates the impact of selected

innovations in technology on service delivery, functional outcome, and as a therapeutic intervention. It

addresses the shortcoming in wheelchair design for persons with brain injury by evaluating a unique,

personalized powered mobility system. Collaboration with the Robotics Institute at Carnegie Mellon

University allows researchers to perform a randomized trial evaluating the efficacy of virtual reality

and robotics for persons with TBI. Finally, the project uses intelligent navigation technology to implement and evaluate a web-based virtual case manager support structure for persons with TBI and their

families.
NIDRR Program Diretory FY 2003 - Health and Function 2-57

Model Traumatic Brain Injury Systems

Texas

North Texas Traumatic Brain Injury Model System (NT-TBIMS)

The University of Texas Southwestern Medical Center

5323 Harry Hines Boulevard

Dallas, TX 75390

ramon.diaz-arrestia@utsouthwestern.edu

Principal Investigator: Ramon R. Diaz-Arrastia, MD, PhD, 214/648-6409

Public Contact: Project Administrator, Fax: 214/648-6320

Project Number: H133A020526

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $364,999; FY 03 $365,000

Abstract: The North Texas Traumatic Brain Injury Model System (NT-TBIMS) provides a comprehensive continuum of care for TBI patients from the time of arrival at the emergency department

through the intensive care unit, inpatient and outpatient rehabilitation, and long-term follow-up after

community integration. Additionally, the NT-TBIMS conducts two research projects aimed at obtaining predictive information regarding outcome after TBI, which is important to the goal of developing

novel therapies and tailoring these therapies to individual patients: (1) to determine whether the inheritance of particular alleles in certain candidate genes is associated with a greater risk of poor outcome

after TBI; and (2) to determine whether functional magnetic resonance imaging of the brain (fMRI) is

predictive of functional recovery after TBI.
2-58 NIDRR Program Diretory FY 2003 - Health and Function

Model Traumatic Brain Injury Systems

Virginia

Traumatic Brain Injury Model System

Virginia Commonwealth University

Department of Physical Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0452

jhmarwit@vcu.edu

www.neuro.pmr.vcu.edu

Principal Investigator: Jeffrey S. Kreutzer, PhD, 804/828-9055

Public Contact: Jennifer Marwitz, 804/828-3704; Fax: 804/828-2378

Project Number: H133A020516

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000

Abstract: This project, utilizing rigorous scientific methods, examines the benefits of intervention

during the acute and post-acute periods after brain injury. TBIMS and other researchers have primarily

focused on delineating outcomes. Until recently, concerns about survivors’ emotional well-being and

adjustment to injury received scant attention. Yet, recent studies have identified a high prevalence of

depression, with many survivors reporting feelings of hopelessness, diminished self- esteem, and social

isolation. Brain injury also affects the family system; family members commonly describe emotional

distress, lack of respite, financial stress, and lack of community support. Projects in three major research areas focus predominantly on survivors. One study examines pharmacological approaches to

the treatment of depression, while another examines a structured approach to the treatment of acute

cognitive and neurobehavioral problems. Examining the benefits of intervention programs for family

members is the third major research area.
NIDRR Program Diretory FY 2003 - Health and Function 2-59

Model Traumatic Brain Injury Systems

Washington

University of Washington Traumatic Brain Injury Model System

University of Washington

Department of Rehabilitation Medicine

Box 356490, BB-953 Health Sciences

Seattle, WA 98195

krbell@u.washington.edu

depts.washington.edu/rehab/tbi

Principal Investigator: Kathleen R. Bell, MD

Public Contact: 206/685-0935; Fax: 206/685-3244

Project Number: H133A020508

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $365,000; FY 03 $365,000

Abstract: This program conducts research relevant to TBI, enhances services to consumers, and

furthers the National Database and intersystem collaboration. The program’s three research projects

are: (1) a randomized controlled intervention study examining the effect of exercise on depression after

TBI. This low-cost, community intervention seeks to combat depression and emotional distress in

persons with stable TBI by employing exercise as a positive approach to improved emotional and

physical functioning and socialization (2) An examination of the characteristics of TBI survivors who

are able to return to employment and hold jobs that are stable and complex in nature, utilizing both the

UW TBI longitudinal database and the Model System database. (3) An examination of the impact of

the Medicare prospective payment system for inpatient rehabilitation on TBI survivors receiving access

to acute rehabilitation efforts. The program also contributes to the National Database.
2-60 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

Alabama

Use of Propranolol to Manage Behavioral Dysfunction and Agitation in

Persons with Postacute Brain Injury

University of Alabama/Birmingham

Department of Physical Medicine and Rehabilitation

619 - 19th Street South, SRC 529

Birmingham, AL 35294-7330

meythaler@sun.rehabm.uab.edu

main.uab.edu/show.asp?durki=30833

Principal Investigator: Jay M. Meythaler, JD, MD, 205/934-2088

Public Contact: Alice Johnson, 205/934-9494; Fax: 205/975-4896

Project Number: H133G000072

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $123,967; FY 01 $123,967; FY 02 $112,313; FY 03 (No-cost extension

through 7/31/2004)

Abstract: This project conducts research to confirm the empirically reported efficacy of the betaadrenergic receptor blocker propranolol in managing behavioral dyscontrol following brain injury (BI)

in the postacute phase (greater than one year). The study builds on published case reports of

propranolol’s effectiveness. It implements the first-ever randomized double-blind crossover trial of

propranolol with placebo control in 50 individuals who are more than one year post-BI, in an outpatient setting. The project establishes whether propranolol decreases the behavioral dyscontrol and

agitation commonly seen in postacute BI; despite widespread empirical use of propranolol, such

decreases have never been established conclusively. It also provides for detailed measurement of

possible neurocognitive side effects of propranolol, which were not evaluated in previous studies. The

study utilizes the Agitated Behavioral Scale for valid and reliable measurement of agitation. The

project utilizes functional brain imaging techniques to provide preliminary insights into possible sites

and mechanisms of action.
NIDRR Program Diretory FY 2003 - Health and Function 2-61

Field-Initiated Projects (FIPs)

Arkansas

Developing a Rehabilitation Service Delivery Model for Minority

Farmers with Disabilities

University of Arkansas/Pine Bluff

Agricultural Economics

1200 North University Drive

Mail Slot 4913

Pine Bluff, AR 71601

mwachofi_a@vx4500.uapb.edu

Principal Investigator: Ari K. Mwachofi, PhD

Public Contact: 870/575-7143; Fax: 870/543-8543

Project Number: H133G000192

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $150,000; FY 01 $150,000; FY 02 $150,000; FY 03 (No-cost extension

through 12/31/2003)

Abstract: This project gathers data from farmers and service providers in Arkansas, Louisiana, and

Mississippi. Using the survey data, the project constructs a model of rehabilitation service delivery for

minority farmers with disabilities based on their needs, perceptions, disabilities, and the most effective

methods of reaching and communicating with them. The main thrust of the project is active participation by minority farmers in research and model building. Project objectives are to: (1) identify and

interview minority farm households that have members with disabilities; (2) identify and interview

nonminority farm households that have members with disabilities; (3) interview rehabilitation counselors and county extension agents; (4) build a service delivery model based on analyses of responses of

the farmers, rehabilitation counselors and county extension agents; and (5) disseminate model and

research findings.
2-62 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

California

Improving Muscular Use and Cardio-Respiratory Demand in SpinalCord-Injured Patients Performing Functional Electronically

Stimulated Leg Cycle Ergonometry

University of California, Davis

Department of Mechanical Aeronautical Engineering

2060 Bainer Hall

Davis, CA 95616

mlhull@ucdavis.edu

Principal Investigator: Maury Hull, PhD

Public Contact: 530/752-6220; Fax: 530/752-4158

Project Number: H133G020137

Start Date: January 1, 2003

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 02 $149,971; FY 03 $146,330

Abstract: This project develops new stimulation patterns for a functional electrically stimulated (FES)

leg cycle ergometer (LCE) that enable persons with spinal cord injuries to exercise with greater benefit.

Greater benefit is defined as exercising for a longer period of time and at a higher work rate while

involving more leg muscles than is possible with existing ergometers. To reach the general aim, the

research is divided into three phases, each directed towards testing a specific hypothesis: (1) normal

recumbent pedaling can be simulated using a computational musculoskeletal model of the leg; (2)

minimizing muscle fatigue in a forward dynamic simulation of recumbent pedaling yields computed

stimulation patterns that enable an individual with SCI to pedal the FES-LCE for longer periods of

time, and at higher work rates, than is possible with current stimulation patterns; and (3) using neural

stimulation patterns computed from a forward dynamic simulation of recumbent pedaling in which

selected muscles of both the upper and lower leg are activated, an individual can pedal the FES-LCE

to obtain a greater cardio-respiratory workout than when only upper leg muscles are stimulated.
NIDRR Program Diretory FY 2003 - Health and Function 2-63

Field-Initiated Projects (FIPs)

California

Cardiovascular Disease in Women with Spinal Cord Injury and Its

Effect on Participation in Community Activities

Los Amigos Research and Education Institute, Inc. (LAREI)

P.O. Box 3500

Downey, CA 90242

julial@larei.org

www.larei.org

Principal Investigator: Yaga Szlachcic, MD

Public Contact: Rodney Atkins, PhD; Lili Thompson, PT, 562/401-7221; Fax: 562/803-6354

Project Number: H133G010160

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $141,470; FY 02 $145,835; FY 03 $149,709

Abstract: The goals of this project are: (1) to profile cardiovascular disease (CVD) risk factors in

women with SCI, (2) to assess the relationships between CVD risk factors and “observable” CVD in

this group, (3) to assess the associations of CVD risk factors and observable CVD with quality of life

and with participation in community activities among women with SCI, (4) to evaluate standard

interventions for lipid abnormalities and CVD in women with SCI, and (5) to assess the impact lipid

and CVD interventions have on the quality of life and community activity participation of women with

SCI. For these goals “observable” CVD refers to atherosclerotic burden by carotid arterial intimamedia thickness.
2-64 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

California

Quantified Custom Inserts: An Amputation Prevention Program for

Diabetic Patients

Rancho Los Amigos

7601 East Imperial Highway

Downey, CA 90242

pklab@larei.org

larei.org/pk-overview.htm

Principal Investigator: Jacquelin Perry, MD; Richard Chambers, MD

Public Contact: Jacquelin Perry, MD, 562/401-7177; Fax: 562/803-5693

Project Number: H133G020002

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $149,999; FY 03 $146,589

Abstract: This project identifies footwear factors which reduce plantar pressures experienced during

walking and decrease the incidence of skin ulceration in individuals with diabetes mellitus. Reduction

of skin ulceration is critical for ensuring maximum independence in living and employment and for

decreasing the emotional and financial consequences associated with managing the disease process and

subsequent disability. Preservation of the patient’s limb depends on reducing the injurious pressures

experienced by the foot during walking. Today’s techniques of shoe and insert production, however,

are inconsistent because no objective criteria for an effective shoe system have been developed. This

may result in persons with diabetes mellitus receiving custom footwear that does not effectively reduce

their plantar pressures. All subjects in this project are at risk for ulceration due to a history of partial

foot amputation or previous foot ulcers. Walking plantar pressures, in newly delivered custom footwear

are measured using pressure localization and quantifying insoles (PEDAR System) placed under each

foot. Subjects are randomly assigned to one of two, 80-person groups for orthotic management. For the

PEDAR control group, the pressure data are discussed with the subject and then stored for later reference. Data for PEDAR internention group are discussed with the subject and then are used to correct

the custom inserts to reduce plantar pressures below 21 N/cm2. The orthotist is given the plantar

pressure plot and modifies the insert as indicated, and planter pressures during gait are reassessed

interactively until the protective threshold is attained.
NIDRR Program Diretory FY 2003 - Health and Function 2-65

Field-Initiated Projects (FIPs)

California

Daily Living Context and Pressure Sores in Consumers with Spinal

Cord Injury

University of Southern California

Department of Occupational Science and Occupational Therapy

1540 Alcazar Street, CHP-133

Los Angeles, CA 90089-9003

jwise@usc.edu

www.usc.edu/hsc/ihp/ot

Principal Investigator: Florence Clark, PhD, OTR, 323/442-2875

Public Contact: Janis Wise, 323/442-2851; Fax: 323/442-1540

Project Number: H133G000062

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $149,942; FY 01 $147,834; FY 02 $149,837; FY 03 (No-cost extension

through 8/31/2004)

Abstract: This project examines the beliefs and practices underlying the activities, habits, and daily

routines of 18 ethnically diverse consumers with SCI. The intent is to document how personality,

lifestyle patterns and choices, and environmental context mutually interact within the individually

constructed lives of consumers to influence the development of pressure sores. The problem of recurrent, medically serious pressure sores represents a key challenge to the ability of individuals with SCI

to experience a full and satisfying life. Although prior research has documented that the development

of pressure sores is in general linked to psychosocial and environmental variables, there is a need to

obtain new, consumer- centered information about how pressure sores can be minimized through

personally tailored adaptive strategies that are responsive to the opportunities and difficulties embedded

in the unique sets of everyday circumstances that characterize individual lives. A variety of data collection procedures, including participant observation as well as interviews with consumers, their

caregivers, and other associated persons, are analyzed to generate results that are comprehensive and

trustworthy. These results are used to develop a series of applied products, including: (1) a consumeroriented self- help manual; (2) a set of guidelines for rehabilitation practice; and (3) a lifestyle- oriented

occupational therapy treatment model. Consumer representatives contribute to all aspects of the project

to ensure that it is relevant and maximally useful to the target population.
2-66 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

California

Development and Evaluation of a Quality of Life Instrument for

Individuals with Adult-Onset Hearing Loss

San Diego State University

School of Speech, Language, and Hearing Sciences

San Diego, CA 92182

carrenjstika@aol.com

Principal Investigator: Carren J. Stika, PhD

Public Contact: 619/594-7746

Project Number: H133G030191

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $149,980

Abstract: This project develops a standardized, psychometrically rigorous quality of life instrument for

individuals with adult-onset hearing loss that is conceptually linked to the full range of functional

domains commonly impacted by hearing loss, and which quantifies respondents’ perceptions of

domain satisfaction and subjective well-being. Further, the quality of life instrument integrates the new

paradigm of disability, whereby environmental, cultural, and personal variables are considered in

relation to the individual’s disability. The enhancement of quality of life has recently been recognized

as the essential purpose of health care and rehabilitation. Research is showing that it is the individual’s

subjective well-being rather than the objective health condition or functional status that determines

treatment-seeking behavior, compliance with treatment, and treatment outcome. Individuals with

hearing loss represent the single largest disability group in the United States, with prevalence rates

rising. Despite the fact that hearing loss often has a profound influence on personal and social adjustment, employment status, and general well-being, few psychological measures currently exist to help

assess these effects or evaluate intervention outcomes
NIDRR Program Diretory FY 2003 - Health and Function 2-67

Field-Initiated Projects (FIPs)

Colorado

Mortality and Life Expectancy After Traumatic Brain Injury

Rehabilitation

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

charrison-felix@craighospital.org

www.craighospital.org

Principal Investigator: Gale G. Whiteneck, PhD, 303/789-8204

Public Contact: Cynthia Harrison-Felix, PhD, 303/789-8565; Fax: 303/789-8441

Project Number: H133G020182

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Abstract: This project investigates mortality, life expectancy, causes of death, and risk factors for

death in individuals with TBI receiving inpatient rehabilitation and surviving beyond one year postinjury. This research tests the following hypotheses: (1) that TBI increases mortality and decreases life

expectancy among survivors completing rehabilitation, (2) that causes of death do not match the

general population, (3) that the risk of death is greater in certain subgroups, and (4) that survival has

increased over the decades of improved care. Products of this project include: (1) a consumer and

professional publication on TBI mortality and life expectancy in the TBI Model Systems, (2) a consumer and professional publication on TBI mortality and life expectancy changes over four decades at

Craig Hospital, (3) an interactive web site allowing entry of basic individual and injury characteristics

that reports probabilities of various life expectancies, and (4) a report on the most effective strategy for

expanding the TBI Model Systems mortality study to include all TBI cases rehabilitated at Model

System facilities, even before they were designated as a Model System. This study, lead by the Rocky

Mountain Regional Brain Injury System at Craig Hospital, involves the 17 TBI Model Systems funded

by NIDRR.
2-68 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

Delaware

Investigation of the Dynamics of Spasticity in Children with Cerebral

Palsy

Alfred I. duPont Hospital for Children

1600 Rockland Road

Wilmington, DE 19899-0269

fee@gait.aidi.udel.edu

www.kidshealth.org

Principal Investigator: Freeman Miller, MD

Public Contact: Dyonne Knotts, 302/651-5921; Fax: 302/651-5951

Project Number: H133G010041

Start Date: November 1, 2001

Length: 36 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 01 $149,708; FY 02 $144,023; FY 03 $148,284

Abstract: This project creates a new assessment tool for spasticity in cerebral palsy that quantifies both

the long-term changes in muscle structure and the short-term effects of the hyperexcitable stretch

reflex. The result is a comprehensive testing protocol that can be used in a wide range of therapeutic

interventions. The new device can apply torques about the knee and ankle of a limb with spasticity in

such a way that velocity, acceleration, and the third derivative, jerk, can be varied and resistance of the

limb to movement measured. The device can be used (1) to investigate the reflex resistance to movement elicited by constant velocity, constant acceleration, and constant jerk; and (2) to define the passive

biomechanics of the limb by applying short duration pulses of torque to the limb combined with the

limb’s position, velocity, and acceleration. This work is unique in the recognition of the limb with

spasticity as a closed loop system consisting of the biomechanics of the limb and the reflexes (due to

motion) feeding back on that limb. As a result of using the new tool, many therapy protocols such as

hippotherapy, stretching, hydrotherapy, range of motion exercises, and others may be found to be of

significant benefit to one component of spasticity over the other.
NIDRR Program Diretory FY 2003 - Health and Function 2-69

Field-Initiated Projects (FIPs)

Georgia

Development of Valid and Reliable Measures of Postural Stability

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

sprigle@arch.gatech.edu

Principal Investigator: Stephen H. Sprigle, PhD

Public Contact: 404/894-4960; Fax: 404/894-9320

Project Number: H133G020240

Start Date: October 1, 2002

Length: 24 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $85,000; FY 03 $232,171

Abstract: This project validates four clinical measures of seated stability. An unresolved biomechanics

problem for wheelchair users is maintaining functional trunk stability during upper extremity movement while achieving functional trunk mobility, when needed. Trunk stability is provided by the

wheelchair backrest, but this trunk support is in direct conflict with trunk mobility. Back or trunk

supports, which envelop the trunk, also restrict mobility. For wheelchair users, balancing sufficient

trunk support with adequate trunk mobility has important functional and medical consequences. Better

understanding of the posture-function relationship is needed to permit seated stability during activities

of daily living while not hindering function by restricting trunk mobility. Assessing postural stability

should be integral to every seating evaluation; however, clinicians have not been provided with valid

measures of stability. This project tests three measures of stability previously defined in the literature

(functional reach, sitting balance, and reach area) and introduces a fourth measure (bilateral reach). The

predictive validity of all four measures is determined by correlating the respective measurements to

results of a series of functional tasks. Concurrent validity is determined by correlating the results of the

four clinical stability measures to each other. In addition, the measures undergo reliability testing. The

outcome of this project is clinical measures of functional postural stability that have construct, concurrent, and predictive validity.
2-70 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

Georgia

The Impact of Cognitive Impairment and Outcomes Following SCI

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road, NW

Atlanta, GA 30309

Principal Investigator: Stephen Macciocchi

Public Contact: 404/350-7553

Project Number: H133G030004

Start Date: September 1, 2003

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 03 $149,642

Abstract: This project is designed to determine whether moderate to severe neurocognitive impairment secondary to comorbid (brain injury) and/or premorbid cognitive disorders (learning disability/

attention deficit disorder) negatively impacts functional, health, quality of life, and participation outcomes following SCI. Particpants are followed (1) to determine the base rate of neurocognitive disorders in persons with SCI and (2) to establish the relative effect premorbid/comorbid neurocognitive

impairment has on functional skills, health status, quality of life outcomes at discharge from inpatient

rehabilitation, and participation outcomes at six months and one year following discharge.
NIDRR Program Diretory FY 2003 - Health and Function 2-71

Field-Initiated Projects (FIPs)

Illinois

Enhancement of Upper Limb Functional Recovery in Stroke Using a

Computer-Assisted Training Paradigm

Rehabilitation Institute Research Corporation

Sensory Motor Performance Laboratory, #1406

345 East Superior Street

Chicago, IL 60611

jpdewald@casbah.acns.nwu.edu

sulu.smpp.nwu.edu/jdewald

Principal Investigator: Julius Dewald, PT, PhD

Public Contact: 312/238-2210; Fax: 312/238-2208

Project Number: H133G80063

Start Date: August 1, 1998

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $124,992; FY 99 $124,923; FY 00 $124,957; FY 02 (No-cost extension

through 10/31/2003) FY 03 (No-cost extension through 10/31/2003)

Abstract: This study investigates use of a novel computer-assisted isometric training regime to overcome abnormal movement synergies following hemiparetic stroke. In most stroke patients, these

synergies are reflected, in part, by the existence of abnormal coordination between the activations of

shoulder and elbow muscles. These stereotypic movement patterns found in stroke survivors are

functionally disabling and often debilitating, yet are not well understood in the rehabilitation setting.

Current neurotherapeutic approaches to the amelioration of these abnormal patterns have produced, at

best, limited functional recovery. Therefore, the objectives of this investigation are to evaluate and

demonstrate the usefulness and effectiveness of a novel static training regime to enhance the quality of

life of consumers with stroke. The effect of 2 training regimes on functional arm movement are being

investigated in 40 hemiparetic stroke subjects. The first protocol uses a general, classical strengthening

regimen to increase torque production in specific directions. The second approach strengthens subjects

using torque combinations that require the subject to deviate progressively from their abnormal torque

synergies. Assessment of the effectiveness of these two protocols is based on quantitative comparisons

of voluntary upper limb movements performed pre- and post-training.
2-72 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

Illinois

The SPIRATE Project (Spinal Injury Risk Assessment for

ThromboEmbolism)

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1407

Chicago, IL 60611

d-green@nwu.edu

Principal Investigator: David Green, MD, PhD

Public Contact: 312/238-4701; Fax: 312/238-1815

Project Number: H133G990046

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $135,244; FY 00 $139,362; FY 01 $143,645; FY 02 (No-cost extension

through 6/30/2003) FY 03 (No-cost extension through 9/30/2003)

Abstract: The purpose of this study is to develop a risk assessment methodology to guide the intensity

and duration of antithrombotic prophylaxis. The study is performed in two parts: a retrospective

analysis of 500 patients treated by the Midwest Regional Spinal Cord Injury Care System over the past

decade, and a prospective analysis of 100 patients admitted for care of spinal cord injury. In the first

part, archival data on the 500 patients is analyzed to identify risk factors for thromboembolism. In the

second part, the 100 patients all receive prophylaxis consisting of compression leggings and Heparin,

they are examined daily for clinical evidence of thrombosis, and they have bilateral contrast venography prior to discharge. Three risk scoring systems are tested. The first is based on the retrospective

study. The second is expanded to include additional factors such as functional measures and emotional

well-being assessments. A third risk scoring system, to be developed, includes the data from the second

system as well as the day-to-day changes in the symptoms recorded over the course of the study for

individual patients. The cross- generalizability of the systems is assessed, and the final instrument is

used to assign patients at high risk to more intensive prophylaxis.
NIDRR Program Diretory FY 2003 - Health and Function 2-73

Field-Initiated Projects (FIPs)

Illinois

Secondary Prevention Trial of Exercise and Diet for Improvement of

Physical Fitness, Independence, and Overall Health in Adult

Paraplegics

University of Illinois at Chicago

College of Health and Human Development Sciences

Department of Human Nutrition and Dietetics

M/C 517

Chicago, IL 60612

braunsch@uic.edu

www.uic.edu/orgs/sci-adapt

Principal Investigator: Carol Braunschweig, PhD

Public Contact: 312/996-8055; Fax: 312/413-0319

Project Number: H133G990143

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $149,959; FY 00 $149,988; FY 01 $149,659; FY 02 (No-cost extension

through 5/31/2003) FY 03 (No-cost extension through 12/31/2003)

Abstract: This project investigates the impact of an exercise intervention coupled with nutrition

education on the strength and fitness of a sample of overweight paraplegics with chronic illnesses. This

intervention improves cardiovascular fitness and strength leading to improved independence and

improved overall health. The research objectives are to recruit adult paraplegics with chronic disease

for involvement in the program and then to compare the effects of the program on physical fitness in

participants who have completed the program to physical fitness in those participants randomized but

waiting, during the same 12 weeks, to begin the intervention. The impact of the program is assessed

using changes in strength and body composition, levels of independence, dietary knowledge and

intakes, blood pressure, the total-to-high-density lipoprotein cholesterol ratio, bone mineral density, and

fasting glucose concentrations.
2-74 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

Illinois

Development of an Intelligent Therapeutic Stretching Device for Stroke

Patients

Rehabilitation Institute of Chicago

345 East Superior Street, Room 1406

Chicago, IL 60611-4496

l-zhang@northwestern.edu

p3.smpp.northwestern.edu

Principal Investigator: Li-Qun Zhang, PhD,

Public Contact: 312/238-4767; Fax: 312/238-2208

Project Number: H133G010066

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $148,822; FY 02 $148, 571; FY 03 $145,955

Abstract: This project develops a useful and practical ankle stretching device with advanced control

features that can be used by therapists and individuals who are post-stroke. Project activities include:

(1) developing a portable stretching device with intelligent control to stretch an ankle joint with spasticity/contracture safely and repeatedly throughout the ankle range of motion (ROM) to reduce spasticity/

contracture, (2) evaluating the outcome quantitatively, and (3) comparing it with a continuous passive

motion machine. The device stretches the joint safely to extreme dorsi- and plantar-flexion until a

specified peak resistance torque is reached with precise control of stretching velocity, based on resistance torque. Outcome is evaluated quantitatively in multiple aspects during each of the stretching

sessions. Changes in joint-intrinsic properties are quantified by the passive ROM, joint stiffness,

viscous damping, and energy loss during the controlled passive stretching, while the reflex changes are

quantified by reflex gain and threshold. Functional changes induced by the stretching are evaluated

through the active ROM, plantar and dorsi-flexor co-contraction, and foot-drop and walking speed

during locomotion. In general, similar stretching devices can be developed to treat spastic joints other

than the ankle and other neurological disorders troubled by spasticity/contracture. Finally, the stretching device is portable and has a relatively low cost, making it convenient and economical for patients

to use in a clinic or at home.
NIDRR Program Diretory FY 2003 - Health and Function 2-75

Field-Initiated Projects (FIPs)

Illinois

Development of a Pressure Ulcer Prevention Beliefs Instrument for

Persons with Spinal Cord Injury

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1436

Chicago, IL 60611-4496

rbking@northwestern.edu

Principal Investigator: Rosemarie B. King, PhD, RN

Public Contact: 312/908-8038; Fax: 312/503-5868

Project Number: H133G010058

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 01 $148,101; FY 02 $149,996; FY 03 $149,987

Abstract: This project develops a measure that clinicians can use to assess the health beliefs of persons

with SCI regarding pressure ulcer (PU) prevention. The goals of the study are to: (1) develop an

instrument to measure PU-prevention health beliefs that is reliable by collecting qualitative data on

perceptions about PU risk and seriousness, barriers to and benefits of preventive skin care, and confidence in performing skin care; (2) develop a health beliefs instrument that is structurally and theoretically valid; and (3) describe the pressure ulcer prevention beliefs of 375 persons with recent or chronic

SCI. Findings facilitate the development of health belief-based interventions that address the multifactorial basis of risk for PU development. The addition of skin care health beliefs to risk prediction

instruments should increase the predictive power of such instruments.
2-76 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

Illinois

Three Dimensional Assessment and Rehabilitation of Arm Function

Following Stroke

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1406

Chicago, IL 60611

r-beer@northwestern.edu

Principal Investigator: Randall F. Beer, PhD

Public Contact: 312/238-1408; Fax: 312/238-2208

Project Number: H133G030204

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 03 $149,957

Abstract: The goal of this project is to develop and evaluate the Multi-Axis Cartesian-based Arm

Rehabilitation Machine (MACARM) - a new device for the quantitative assessment and rehabilitation

of three dimensional arm movements following stroke. As a cost-effective alternative to robotic arm

technology, the MACARM utilizes a geometric arrangement of relatively simple, single degree of

freedom “Active Modules” to achieve a large workspace and high force and positional performance.

The MACARM is founded on the Multipurpose Multiaxial Isokinetic Dynamometer (MMID) originally developed as an exercise system for NASA. The objectives of this project are as follows: (1) to

modify the MMID hardware to achieve the force and positional accuracy required for upper limb

rehabilitation, (2) to develop MACARM software for upper limb assessment and rehabilitation, (3) to

validate the static and dynamic force and positional performance of the MACARM, and (4) to test the

MACARM with human subjects, including stroke survivors.
NIDRR Program Diretory FY 2003 - Health and Function 2-77

Field-Initiated Projects (FIPs)

Maryland

Consumers’ Participation in Nursing Home Decision-making

Preferences and Perceptions

University of Maryland/Baltimore County

Policy Sciences Graduate Program

1000 Hilltop Circle

Baltimore, MD 21250

nanmille@umbc.edu

Principal Investigator: Nancy Miller, PhD

Public Contact: 410/455-3889; Fax: 410/455-1172

Project Number: H133G000068

Start Date: June 1, 2000

Length: 36 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $149,556; FY 01 $149,067; FY 02 $147,015; FY 03 (No-cost extension

through 9/30/2003)

Abstract: This project examines decision-making about long-term care, as it relates to institutional

admission and discharge, viewing these decisions as having a critical influence on the opportunities

individuals have to attain valued long-term care goals. The study explores the decision-making process

of a nursing home population for which little information is available—working-age residents. Current

research has focused on acute care for the most part; limited attention has been given to consumer

values and preferences in long-term care and the role, if any, these play in long-term care decisions.

Specific objectives and analyses include describing the level of consumer participation in the nursing

home admission decision and describing the perceived adequacy of participation in decision-making

by consumers.
2-78 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

Maryland

Increasing States’ Allocations of Medicaid Dollars to CommunityBased Care: Where Might Policy Intervene?

University of Maryland/Baltimore County

Policy Sciences Graduate Program

1000 Hilltop Circle

Baltimore, MD 21250-0001

nanmille@umbc.edu

Principal Investigator: Nancy Miller, PhD

Public Contact: 410/455-3889; Fax: 410/455-1172

Project Number: H133G010023

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 01 $148,706; FY 02 $130,519; FY 03 $58,309

Abstract: This research project features two related studies. First, the project examines factors that

influence community-based care expenditures for different subgroups of individuals with disabilities.

Analyses focus on Medicaid 1915(c) waiver expenditures, examining the effect of a set of state-level

variables shown in previous work to be related to state fiscal effort, on expenditures for five segments

of the population: the frail elderly, individuals with developmental disabilities, younger people with

disabilities, persons with AIDS, and children with a variety of disabling conditions. Research identifies

the extent to which variables amenable to policy influence are either shared, or differ across segments

of the population with disabilities. Second, the project examines the relationship between increased use

of 1915(c) waiver services and total, as well as institutional, long-term care expenditures. Research

examines the extent to which states can redirect institutional dollars to community-based care without

increasing total long-term care expenditures. Community-based care services are, on average, noticeably less costly than institutional services; if the site of care is the community rather than the institution

more individuals are able to access care. Providing greater access to long- term care in preferred

community settings, without increasing total long-term care costs, is viewed as evidence of cost effectiveness. Cost concerns have repeatedly been raised in discussions to expand community-based care.

By focusing on Medicaid 1915(c) waiver programs, this project provides important cost effectiveness

information not presently available.
NIDRR Program Diretory FY 2003 - Health and Function 2-79

Field-Initiated Projects (FIPs)

Maryland

Bilateral Arm Training in Patients with Chronic Hemiparesis

University of Maryland

100 Penn Street

Baltimore, MD 21201-1082

jwhitall@som.umaryland.edu

pt.umaryland.edu/academic/phd

Principal Investigator: Jill Whitall, PhD

Public Contact: 410/706-0764; Fax: 410/706-6387

Project Number: H133G010111

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 01 $148,579; FY 02 $148,742; FY 03 $150,000

Abstract: This project uses a randomized controlled study to test the validity of low intensity repetitive

bilateral arm training with rhythmic auditory cuing to improve upper extremity (UE) motor function.

This training program is based on principles of motor learning and control. A long-term objective of

this research program is to understand the principles and mechanisms underlying UE stroke rehabilitation and to provide a scientific basis for planning treatments for stroke rehabilitation.
2-80 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

Massachusetts

Development of Methods to Monitor Functional Tasks

NeuroMuscular Research Center

Boston University

19 Deerfield Street 4th Floor

Boston, MA 02215

sroy@bu.edu

nmrc.bu.edu

Principal Investigator: Serge H. Roy, ScD

Public Contact: 617/358-0718; Fax: 617/353-5737

Project Number: H133G020108

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Abstract: This project develops a method to identify functional activities based on combined surfacedetected electromyographic and accelerometer signals. This capability provides an ability to discriminate between various functional activities such as feeding, grooming, dressing, ambulating, toileting,

and transfers solely on the basis of information from wearable biosensors. Self-report methods currently in use are subjective or are clinically based and do not accurately portray a patient’s functional

status throughout the day in their home or community. Existing monitors rely solely on accelerometers

to provide continuous activity monitoring in remote locations, but they are limited to general activity

assessment. This method can be combined with commercially available data loggers for a portable

system that continuously and unobtrusively monitors the functional abilities of a patient in their home

or community. Such objective and quantitative information can improve the effectiveness of rehabilitation services by establishing realistic goals, monitoring home-based therapy, and establishing the need

for transition to other levels of care.
NIDRR Program Diretory FY 2003 - Health and Function 2-81

Field-Initiated Projects (FIPs)

Michigan

Functional Assessment and Treatment of Neurogenic Hypotension Due

to Spinal Cord Injury

Rehabilitation Institute of Michigan

Wayne State University

261 Mack Boulevard, Room 834

Detroit, MI 48201

enieshof@dmc.org

Principal Investigator: Edward Nieshoff, MD

Public Contact: 313/745-9733; Fax: 313/745-1063

Project Number: H133G020128

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $116,835; FY 03 $116,118

Abstract: This project characterizes hypotensive phenomena associated with SCI and evaluates the

effects of midodrine, an alpha-sympathomimetic medication, on them. Specifically, cardiovascular

autonomic insufficiency due to SCI is manifested by (1) orthostatic hypotension, which impedes early

rehabilitation efforts and causes subjective distress, and (2) exertional hypotension, which contributes

to pathological fatigue and limited exercise performance. Thus, two corresponding protocols are

employed to evaluate the effects of anti-hypotensive treatment with midodrine on each impairment,

using two methods of hemodynamic challenge: head-up tilt table testing is used to elicit orthostatic

hypotension, and arm-crank ergometry to elicit exertional hypotension. In each protocol, a randomized

crossover within-subjects design allows for comparison of the effects of three interventions (compression garments, midodrine 10mg, and placebo) on subjective and objective responses. Ability to tolerate

head-up tilt is assessed by heart rate, blood pressure, and symptoms during inclination; exercise tolerance is evaluated by oxygen consumption and perceived exertion in addition to the latter. Similar

cardiovascular autonomic insufficiency in non-paralyzed populations responds dramatically to treatment with the midodrine, with increased ability to engage in physical activity. This project is the first

controlled trial of midodrine in SCI.
2-82 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

Minnesota

Effect of Electrical Stimulation on Brain Reorganization in Subjects

with Stroke

University of Minnesota

MMC 388

Minneapolis, MN 55455-2070

carey007@umn.edu

Principal Investigator: James R. Carey, PhD

Public Contact: 612/626-2746; Fax: 612/625-7192

Project Number: H133G010077

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 01 $149,995; FY 02 $149,993; FY 03 $149,985

Abstract: This project studies the effects of training finger movement control in subjects with stroke

using a finger movement tracking paradigm on manual skill and also on brain reorganization, as

measured by functional magnetic resonance imaging. Although brain imaging studies show evidence

of brain reorganization in individuals who have recovered from stroke, these studies have not examined the subjects before and after their rehabilitation. Electrical stimulation has been found to be

effective in helping recover hand function in many but not all individuals with stroke. This project

instructs subjects with stroke in aggressive (six hours per day) electrical stimulation treatment to be

done in their own home. Furthermore, it explores whether the sensory bombardment that occurs

centrally with electrical stimulation causes an expansion of cortical activity and whether this might be

the mechanism for improved manual control following treatment. Subjects with stroke are assigned

randomly to either an electrical stimulation group or a control group. Appropriate tests of manual

performance as well as brain imaging using a 4 Tesla magnet are conducted at pretest, post-test, and

follow- up. This research has the potential of uncovering important information on recovery from

stroke that invites many more studies in the future.
NIDRR Program Diretory FY 2003 - Health and Function 2-83

Field-Initiated Projects (FIPs)

Minnesota

Personalized Health Care for Individuals with Physical Disabilities:

Satisfaction with Services and Outcomes

University of Minnesota

Institute on Community Integration

111 Pattee Hall

150 Pillsbury Drive Southeast

Minneapolis, MN 55455-0223

abery001@umn.edu

Principal Investigator: Brian Abery, PhD

Public Contact: 612/625-5592; Fax: 612/624-9344

Project Number: H133G010064

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 01 $149,834; FY 02 $149,178; FY 03 $149,539

Abstract: This project demonstrates both the direct and indirect effects of the AXIS approach to health

care on the lives of adults with physical disabilities. AXIS Healthcare, a joint venture of Sister Kenny

Institute and Courage, Inc., was formed to bring knowledge of physical disability to the application of

managed care. When dealing with health issues, people with physical disabilities often find themselves

battling not only illness but also the health care system itself; this project works in partnership with

persons with physical disabilities to coordinate a high-quality, cost effective network of specialized

services spanning the continuum of care. Over the course of the project, the health outcomes and

satisfaction levels of individuals with physical disabilities taking part in this program are monitored on

a regular basis. The health outcomes and satisfaction of a comparison group of individuals receiving

care through traditional plans are also followed during this time. The project is conducted with the

understanding that programs similar to this one are not likely to be established on a wide-scale basis

until it can be empirically demonstrated that such programs have a significant impact on the quality of

life of the people they serve. The project is a collaborative effort of The University of Minnesota,

Courage Inc., AXIS Healthcare, and The Metropolitan Center for Independent Living in Minneapolis.
2-84 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

Minnesota

Home-Based Tracking Training to Stimulate Neuroplasticity and

Improve Function in Stroke

University of Minnesota

MMC 388

Minneapolis, MN 55455-2070

carey007@umn.edu

Principal Investigator: James R. Carey, PhD, PT

Public Contact: 612/626-2746; Fax: 612/625-7192

Project Number: H133G020145

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $149,929; FY 03 $149,989

Abstract: This project examines: (1) whether home-based joint movement tracking training is effective

in promoting improved hand function and brain reorganization in subjects with chronic stroke, and (2)

whether the mechanism of any such improvement is learning-dependent or use-dependent. Recent

research has shown that repetitive efforts by subjects with chronic stroke using their paretic hand at a

finger movement tracking task produced significant improvements in hand function and brain reorganization. The training technique requires patients to learn how to create precision movements of the

index finger to track target waveforms on a computer screen. This project investigates whether homebased tracking treatment using a laptop computer and telecommunication technology can be as effective as earlier work with clinic-based treatment. Equally important, this project determines whether it is

the motor learning or the repetitive movement that serves as the mechanism of improvement.
NIDRR Program Diretory FY 2003 - Health and Function 2-85

Field-Initiated Projects (FIPs)

New Hampshire

Project PATH (Promoting Access, Transition, and Health)

University of New Hampshire

Recreation Management and Policy

Hewitt Hall, Room 105

Durham, NH 03824-3585

jrsable@cisunix.unh.edu

www.unh.edu/rmp/rmpfiles/path.htm

Principal Investigator: Janet Sable, PhD, 603/862-3401

Public Contact: Jill Gravink, 603/862-0070; Fax: 603/862-2722

Project Number: H133G000150

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $149,996; FY 01 $149,996; FY 02 $149,996; FY 03 (No-cost extension

through 12/01/2003)

Abstract: This project performs a randomized, controlled trial of Project PATH (Promoting Access,

Transition, and Health), a community-based health promotion wellness program for people with new

spinal cord injuries (SCIs). This health-promoting program involves a variety of interventions including wellness education, an individualized fitness program, recreation skill development with family and

friends, community accessibility and advocacy, and peer advising. Working in conjunction with

consumers, family, friends, and health and rehabilitation professionals, Project PATH is designed to

empower people with new SCIs to make prudent and appropriate use of recreation and leisure resources and in that way, to reduce the incidence and intensity of some the most prevalent and destructive secondary conditions of SCI: e.g., pressure sores, upper respiratory and urinary tract infections,

and depression. The project is a coordinated effort among the University of New Hampshire, Northeast Passage, a group of private proprietary rehabilitation hospitals, a private, nonprofit hospital,

university-based research, and the New England Regional SCI Center.
2-86 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

New Hampshire

Catecholaminergic Modulation of Working Memory in Traumatic

Brain Injury: An fMRI Study of the Effects of D2 Dopaminergic and

Alpha-2 Adrenergic Agonistics

Dartmouth College

DHMC

Department of Psychiatry

1 Medical Center Drive

Lebanon, NH 03756-0001

thomas.w.mcallister@dartmouth.edu

synapse.hitchcock.org

Principal Investigator: Thomas W. McAllister, MD, 603/650-5824

Public Contact: Patricia Shaw, 603/650-7552; Fax: 603/650-5842

Project Number: H133G000136

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $150,000; FY 01 $150,000; FY 02 $150,000; FY 03 (No-cost extension

through 6/30/2004)

Abstract: This project determines the role of dopaminergic (DA) and alpha-2 adrenergic (A2A)

mechanisms in the memory deficits experienced after a TBI. Many of the 1-2 million individuals who

sustain a mild-to-moderate TBI (MMTBI) each year suffer deficits in working memory in the first

several weeks after the injury. This project uses neurocognitive and (functional MRI) measures in two

populations, one with normal working memory (healthy controls), and one with low working memory

capacity (individuals with MMTBI) to: (1) characterize baseline working memory deficits in two

domains (verbal and spatial) within one month of MMTBI, and (2) test and compare the ability of DA

and A2A agonists to ameliorate working memory deficits in the two domains within one month of

MMTBI. The study predicts that relative to healthy controls, individuals with MMTBI have greater

deficits in verbal and spatial working memory, show greater improvement in working memory while

on D2 and A2A agonists, and that DA and A2A agonists result in different profiles and degrees of

working memory improvement. Furthermore, relative to controls, the fMRI of individuals with

MMTBI should show less activation associated with low and high working memory load conditions,

should normalize when acquired while on DA and A2A agonists, and should show selective prefrontal

increased activation in response to increased working memory load.
NIDRR Program Diretory FY 2003 - Health and Function 2-87

Field-Initiated Projects (FIPs)

New York

Randomized Controlled Trial of Anti-Fatiguing Exercise to Improve

Function in Multiple Sclerosis Patients

State University of New York (SUNY) at Buffalo

Department of Rehabilitation Science

515 Kimball Tower

Buffalo, NY 14214

nfisher@buffalo.edu

phhp.buffalo.edu/rs/rehabphys

Principal Investigator: Nadine M. Fisher, EdD

Public Contact: 716/829-3141, ext. 145; Fax: 716/829-3217

Project Number: H133G010132

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000

Abstract: The goals of this study are: (1) to measure the changes in fatigue that result from a simulated

workday and the next morning (incomplete recovery and residual fatigue); and (2) to study the effectiveness of a 12-week program of anti- fatiguing resistance exercises. Multiple Sclerosis (MS) is a

demyelinating disease of the central nervous system; the most common symptom of MS is a generalized sense of fatigue and reduced function. Few studies have considered the role of exercise as a

treatment for fatigue in people with MS. Subjects with MS are randomly assigned an exercise group

and receive an individualized progressive resistance training program of anti-fatiguing exercises to

perform three days per week in the lab or at home.
2-88 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

New York

Acupuncture as an Adjunctive Treatment in Stroke Rehabilitation

Beth Israel Medical Center

Center for Health and Healing

245 Fifth Avenue, 2nd Floor

New York, NY 10016

sshiflet@chpnet.org

www.healthandhealingny.org

Principal Investigator: Samuel C. Shiflett, PhD, 646/935-2244

Public Contact: Fax: 646/935-2273

Project Number: H133G000120

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $149,556; FY 00 $149,343; FY 01 $149,655; FY 02 (No-cost extension

through 6/30/2003) FY 03 (No-cost extension through 12/31/2003)

Abstract: This project designs and evaluates safe and efficacious ways acupuncture may be used to

benefit the functional recovery of survivors of stroke when used in addition to standard rehabilitation.

The project directly addresses the medical, cognitive, and psychological sequelae of stroke, and addresses which acupuncture points and model to use, when to start acupuncture, and the use of

electroacupuncture. The project also compares acupuncture with and without electrical stimulation in

stroke treatment. The aim of the study is to use rigorous research methods to determine: (1) whether

acupuncture has a beneficial effect on activities of daily living, motor and cognitive functioning, and

quality of life in post-stroke survivors above and beyond standard rehabilitation; and (2) if so, whether

the length of time after stroke, before acupuncture is begun, affects the extent to which acupuncture is

effective, and optimal time to begin acupuncture therapy. In addition, it is important to determine

whether there is any benefit to initiating acupuncture treatment in stroke survivors who are well past

the subacute stage and who have apparently reached a plateau in their recovery.
NIDRR Program Diretory FY 2003 - Health and Function 2-89

Field-Initiated Projects (FIPs)

New York

Muscle Strength, Physical Work Capacity and Functional Performance

in Individuals with Down Syndrome

Syracuse University

Exercise Science Department

820 Comstock Avenue, Room 201

Syracuse, NY 13244

bfernhal@syr.edu

Principal Investigator: Bo Fernhall, PhD

Public Contact: 315/443-2114; Fax: 315/443-9375

Project Number: H133G030150

Start Date: November 1, 2003

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 03 $149,046

Abstract: This project evaluates the minimal muscle strength and endurance thresholds required for

daily functional performance, such as rising from a chair, ascending or descending stairs, the ability to

walk fast enough to cross a street in the time allotted at signaled intersections, and general walk/run

performance. The project also evaluates the effect of resistance training on the ability to perform these

daily tasks and on quality of life in individuals with Down syndrome. This project is built on the

premise that most individuals with Down syndrome have low levels of muscle strength which substantially contribute to functional limitations, poor work capacity and reduced quality of life. Although

many other factors contribute to functional limitations and decreased quality of life in people with

disabilities, muscle strength is a consistent major contributor, and muscle strength can easily be addressed in intervention programs.
2-90 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

Ohio

Empowering Persons with a Spinal Cord Injury Through a Shared

Decision-Making Program

Case Western Reserve University

2500 Metrohealth Drive

Cleveland, OH 44109

pkmurray@metrohealth.org

Principal Investigator: Patrick Murray, MD, 216/778-3901

Public Contact: Mary Jo Roach, PhD, Project Manager, 216/778-8781; Fax: 216/778- 3945

Project Number: H133G020029

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $149,759; FY 03 $149,759

Abstract: This project systematically summarizes information concerning the various aspects of

bladder management and SCI and prepares it in a format that allows persons with SCI to make more

informed decisions about this issue. A panel of clinicians, experts in the care of persons with SCI, meet

to develop a table of estimates concerning costs, complications, long-term risks, and effects on other

aspects of care for each of the four commonly used approaches to bladder management and two

emerging technologies. This panel is supported by a team that abstracts relevant literature and assists

with decision analysis, when needed. These clinical estimates are shared with three focus groups of

persons with SCI. The focus groups discuss the clinical findings and add relevant information about

how the clinical aspects integrate with personal, vocational, and preference issues for individuals with

SCI. The investigators use these two sets of information to develop a script for a multimedia presentation tailored to address the specifics of any individual’s clinical situation. The multimedia presentation

is evaluated for its ability to enhance informed decisions among persons with SCI concerning bladder

management.
NIDRR Program Diretory FY 2003 - Health and Function 2-91

Field-Initiated Projects (FIPs)

Oregon

Traumatic Brain Injury Rehabilitation: The Argentina Project

Oregon Health and Science University

School of Medicine

3181 Southwest Sam Jackson Park Road, L472

Portland, OR 97201-3098

chesnutr@ohsu.edu

www.ohsu.edu/som-ntrg

Principal Investigator: Randall Chesnut, MD

Public Contact: Nancy Carney, PHD, 503/494-0663; Fax: 503/494-4551

Project Number: H133G000154

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $149,905; FY 01 $149,645; FY 02 $149,038; FY 03 (No-cost extension

through 7/14/2004)

Abstract: This project compares a cohort of 200 TBI patients from Argentina with a matched sample

of 200 cases from the National TBI Model Systems Database. The Neurotrauma Group of the Argentina Society of Intensive Medicine (SATI) has instituted, at a group of trauma hospitals in Argentina, a

level of TBI acute care equal to that found in U.S. hospitals. However, TBI patients in Argentina are

discharged from this excellent acute care to no further formal treatment. This affords an opportunity to

test two groups of TBI survivors who have equivalent levels of acute care but radically different

postacute rehabilitation care. In the U.S. sample, all cases have had at least postacute, inpatient rehabilitation. Some have had outpatient treatment as well. Patients in both groups are case-matched for

major predictive variables and are compared with respect to short- and long-term mortality and morbidity, to investigate the influence of postacute care on outcome. Additionally, the influence of acute care

management practices on outcome is evaluated and regression analysis is used to establish the major

predictive variables in this patient population. This project is the first to address integrated TBI management under the conditions of significant resource limitations that exist in many areas of the world.
2-92 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

Pennsylvania

Opening the “Black Box”: The Content and Process of Learning in

Inpatient Traumatic Brain Injury Rehabilitation

Moss Rehabilitation Research Institute

1200 West Tabor Road

Philadelphia, PA 19141

thart@einstein.edu

Principal Investigator: Tessa Hart, PhD

Public Contact: 215/456-6544; Fax: 215/456-5926

Project Number: H133G020052

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $144,312; FY 03 $147,355

Abstract: This project aims to perform a systematic study of the content and process of learning events

and teaching strategies in inpatient TBI rehabilitation, and to develop reliable tools by which they may

be characterized. Much of the content and process of rehabilitation for TBI remains within a “black

box” of unspecified therapy approaches and modalities. This project uses a variety of innovative

strategies to open the “black box,” to collect and analyze data on content and process variables for both

qualitative and quantitative purposes. Following a participatory action research model, the project

utilizes a project team composed of experienced clinicians in the field of TBI rehabilitation. The team

uses converging task analysis methods including group process, interviewing, and field observation to

develop a systematic, hierarchically organized classification of learning events used in inpatient TBI

rehabilitation, and a classification system and operational definitions of key therapist behaviors in the

areas of task setup, task guidance, and task feedback/reinforcement. Particular attention is devoted to

aspects of content and process relevant to errorless learning, on the assumption that this strategy will be

particularly valuable to future research efforts. The team is assisted throughout by distinguished consultants with expertise in TBI and cognitive rehabilitation, errorless learning, and rehabilitation research methodology.
NIDRR Program Diretory FY 2003 - Health and Function 2-93

Field-Initiated Projects (FIPs)

Pennsylvania

Naturalistic Action Impairment in Left Hemisphere Stroke: Cognitive

Predictors and Consequences

Albert Einstein Healthcare Network

5501 Old York Road

Philadelphia, PA 19141

lbuxbaum@einstein.edu

Principal Investigator: Laurel Buxbaum, PsyD

Public Contact: 215/456-5953; Fax: 215/456-5926

Project Number: H133G030169

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $149,936

Abstract: This project: (1) provides a detailed analysis of the cognitive and neuroanatomical predictors

of naturalistic action (NA) performance in well- characterized individuals who have suffered left

hemisphere stroke; (2) clarifies the relationships between left hemisphere apraxia and the performance

of NA; (3) identifies the left hemisphere neuroanatomic structures associated with NA impairment; (4)

improves the construct validity of the Naturalistic Action Test, a published measure of NA developed

by the investigators, by establishing its relationship to tests of apraxia, and extending what is known of

its relationships to measures of attention and executive function; and (5) educates rehabilitation professionals and caregivers about results these research goals. Acquired impairment in activities of daily

living and instrumental activities of daily living such as meal preparation, dressing, and shopping is a

common and persistent consequence of stroke, affecting approximately 50 percent of the nearly four

million Americans living with the effects of stroke. Impairment in these NA activities has important

consequences for caregiver burden and independence, and predicts future risk of failure to return to

work, nursing home admission, and death.
2-94 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

Rhode Island

Shake It Up for Alcohol and Substance Use Reduction! Health

Promotion and Capacity Building for Persons with Traumatic Spinal

Cord Injuries

Brown University

Center for Alcohol and Addiction Studies

Box G-BH

Providence, RI 02912

sarah_everhart@brown.edu

Principal Investigator: Pamela Block, PhD; Sarah Everhart Skeels

Public Contact: 401/444-1876; Fax: 401/444-1850

Project Number: H133G010094

Start Date: January 1, 2002

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $149,783; FY 02 $148,927; FY 03 $149,939

Abstract: Project Shake It Up provides individualized and self-directed supports in the areas of

physical activity, recreation, life skills, health promotion, and prevention, including alcohol and substance use reduction, for people with SCI. The project attempts to motivate positive life changes and

build the capacities of individuals with SCI through the development of peer support networks and

self- advocacy. Project Shake It Up also builds the capacity of two local nonprofit organizations

controlled and staffed primarily by individuals with disabilities: Shake- A-Leg, Inc., whose focus is

recreation and rehabilitation, and PARI, a center for independent living. Project objectives include: (1)

developing a culturally competent training and recreation program, including a manual that addresses

independent living issues such as disability rights, self-advocacy, education, employment, transportation, sexuality, alcohol and substance use, and health promotion; (2) implementing and evaluating the

Shake It Up program for health promotion, physical activity, and alcohol and substance use reduction;

(3) establishing peer-support networks to provide long- term support for intervention participants; (4)

increasing the capacity of Shake-A-Leg and PARI to promote alcohol and substance use reduction

through health promotion and empowerment; and (5) disseminating the program nationwide by making the manual the Shake It Up model widely available.
NIDRR Program Diretory FY 2003 - Health and Function 2-95

Field-Initiated Projects (FIPs)

South Carolina

Aging After Spinal Cord Injury: Three Decades of Longitudinal

Research

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

Research Office

19 Hagood Ave, Suite 910

PO Box 250822

Charleston, SC 29425

cokerj@musc.edu

www.shepherd.org/shepherdhomepage.nsf/Pages/EducationCrawford?OpenDocumen t

Principal Investigator: James S. Krause, PhD, 843/792-1337

Public Contact: Jennifer Coker, MPH, 843/792-2605; Fax: 843/792-1107

Project Number: H133G020239

Start Date: September 1, 2002

Length: 24 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 02 $149,858; FY 03 $149,998

Abstract: This study performs a sixth data collection in the ongoing Minnesota longitudinal study in

order to identify how the life situation of people with SCI has changed over the past three decades,

with an emphasis on evaluating the roles of aging and environmental change. This study has used a

revolving prospective panel design that follows participants longitudinally over time, adding new

samples at different times to counteract attrition. The study was initiated in 1973, with three subsequent

follow-ups carried out over a 25-year period (1984, 1988, 1993, and 1998). A Southeastern sample

was added in 1993 to add a more diverse participant sample with a larger portion of women and

minorities. The 699 respondents from the 25-year follow-up and a new sample of 500 individuals with

SCI are asked to complete materials. This sixth study stage is the most extensive follow-up yet performed, with the addition of several new measures that include: (1) portions of the Behavioral Risk

Factor Surveillance System (BRFSS); (2) expanded assessment of employment history; (3) a measure

of depression that was specially designed to avoid items that are confounded with health conditions

(the Older Adult Health and Mood Questionnaire; and (4) a standardized measure of environment, the

Craig Hospital Inventory of Environmental Factors. This study also has the added benefit of greater

consumer involvement at each step of the study. Results of the study enhance both rehabilitation

professionals’ and consumers’ understanding of the consequences of aging with SCI and lay the

foundation for future interventions.
2-96 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

South Carolina

Risk for Early Mortality After Spinal Cord Injury

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

Research Office

19 Hagood Ave, Suite 910

PO Box 250822

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD, 843/792-1337

Public Contact: Jennifer Coker, MPH, 843/792-2605; Fax: 843/792-1107

Project Number: H133G030117

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $149,984

Abstract: This project identifies the relationships of life adjustment, quality of-life, activities, fitness,

and secondary conditions with length of survival and causes of death after SCI. Two studies utilize

distinct prospective data sets. The data for study 1 was collected from 362 participants in 1990/1991,

whereas the data for study 2 was collected from 597 participants in 1995/1996. Similar, but not identical, measures were obtained from each of the two study samples. Current mortality status is identified

using the National Death Index and the Master Beneficiary Record and Summary Earnings files from

the Social Security Administration. The most basic biographic and injury related variables are entered

as a block first as statistical controls. The general life adjustment and health variables and the more

specific secondary conditions variables, none of which have been the focus of previous studies, are

investigated in more detail in relation to mortality, as they hold the greatest promise for intervention.
NIDRR Program Diretory FY 2003 - Health and Function 2-97

Field-Initiated Projects (FIPs)

Texas

Health Promotion for Women Aging with Disability

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

Center for Research on Women with Disabilities

3440 Richmond Avenue, Suite B

Houston, TX 77046-3403

rhughes@bcm.tmc.edu

www.bcm.tmc.edu/crowd

Principal Investigator: Rosemary B. Hughes, PhD

Public Contact: 713/960-0505; Fax: 713/961-3555

Project Number: H133G000226

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $149,940; FY 01 $149,998; FY 02 $150,000; FY 03 (No-cost extension

through 6/30/2004)

Abstract: This project studies whether an intervention to improve self- efficacy and connectedness

improves health-promoting behaviors, which is related to improved physical and psychological health.

The research is based on two hypotheses: First, regarding the effectiveness of the intervention, women

aging with physical disabilities who participate in a health promotion workshop intervention report

higher levels of connectedness and self-efficacy in disability management after the intervention and at a

three-month follow-up, than women aging with physical disabilities who do not participate in the

intervention; and second, regarding predictors of health outcomes and the mediating effect of health

promoting behaviors, connectedness in social and intimate relationships and self-efficacy in disability

management significantly predict health promoting behaviors, which predict physical and psychological health outcomes among women aging with physical disabilities, when severity of disability and

socioeconomic status are controlled.
2-98 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

Texas

Assessment of Social Communication Abilities Following Traumatic

Brain Injury

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund

Houston, TX 77030-3498

strucm@tirr.tmc.edu

www.braininjuryresearch.org

Principal Investigator: Margaret Struchen, PhD

Public Contact: 713/666-9550; Fax: 713/383-5695

Project Number: H133G010152

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 01 $149,657; FY 02 $146,203; FY 03 $149,968

Abstract: This project is guided by a model of social communication that includes cognitive components, awareness, the social environment, and receptive, processing, and expressive components.

Activities include: (1) adapting social skills measures used with other populations to test the receptive,

processing, and expressive social communication abilities of persons with TBI and comparing the

results to those of a group of matched control subjects; (2) assessing the relationship between social

communication ability and functional outcome for persons with TBI and their family members; and (3)

investigating the relationship between executive functioning abilities and social communication skills,

in an effort to determine the cognitive functions underlying social skills impairment. The study is

expected to result in a clinically feasible and meaningful way to assess social communication abilities,

which can be a guide to clinicians in developing empirically driven interventions to improve social

skills.
NIDRR Program Diretory FY 2003 - Health and Function 2-99

Field-Initiated Projects (FIPs)

Texas

Cost Effectiveness Of Rehabilitation Following Traumatic Brain Injury

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

1333 Moursund Avenue

Houston, TX 77030-3498

whigh@bcm.tmc.edu

www.braininjuryresearch.org

Principal Investigator: Walter M. High Jr., PhD

Public Contact: 713/383-5643; Fax: 713/668-5210

Project Number: H133G030144

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $150,000

Abstract: This project researches the effectiveness of rehabilitation on two new cohorts of persons

with TBI who have either received or not received comprehensive inpatient rehabilitation. At one year

post injury, costs for services the persons with TBI are likely to receive and vocational losses are

calculated and adjusted for demographic, socioeconomic, and neurological variables. The differences

between the costs and vocational losses between the two groups are then compared to the actual

reimbursements for comprehensive inpatient rehabilitation services.
2-100 NIDRR Program Diretory FY 2003 - Health and Function

Field-Initiated Projects (FIPs)

Wisconsin

Quantitative Study of Anterior and Posterior Walker Usage Dynamics

in Children with Cerebral Palsy

Marquette University

Orthopaedic and Rehabilitation Engineering Center

P.O. Box 1881

Milwaukee, WI 53201-1881

gerald.harris@marquette.edu

www.orec.org

Principal Investigator: Gerald F. Harris, PhD, PE, 414/288-0698

Public Contact: Deborah Epps, Project Administrator, 414/288-0696; Fax: 414/288- 0713

Project Number: H133G010069

Start Date: November 1, 2001

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $149,995; FY 02 $149,991; FY 03 $149,997

Abstract: This study enables caregivers to make more informed decisions regarding proper walker

selection and follow-up by comparing the effects of anterior walkers versus the effects of posterior

walkers among ambulatory patients with spastic cerebral palsy. It also provides a quantitative foundation for improving future pediatric walker designs. A hallmark of this study is the acquisition of functional performance data using standardized mobility test instruments. Each child entered into the study

is evaluated using the Gross Motor Function Measure, in addition to the Pediatric Outcomes Data

Collection Instrument at each stage of the study. The children also undergo standardized spasticity

testing with the Ashworth and Tardieu assessment scales. Final statistical comparison/correlation of the

quantitative (biomechanical) and functional assessment test results is used to streamline the walker

evaluation process and offer a more practical tool for assessment and walker prescription.
NIDRR Program Diretory FY 2003 - Health and Function 2-101

Field-Initiated Projects (FIPs)

Wisconsin

Enhanced Upper Limb Motor Control by Reduced Synergistic Muscle

Patterns and Spasticity After Chemodenervation

Medical College of Wisconsin

Physical Medicine and Rehabilitation

8701 Watertown Plank Road

Box 26509

Milwaukee, WI 53226

jmcguire@mcw.edu

Principal Investigator: John McGuire, MD

Public Contact: 414/805-7355,

Project Number: H133G020112

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 02 $149,995; FY 03 $149,995

Abstract: This research project assesses the impact of chemodenervation treatment on motor control in

patients with spastic hemiparesis. Moreover, the project examines the neurophysiological mechanisms

of improved motor control following chemodenervation treatment by utilizing state-of-the-art biomechanical analyses of motor abilities in combination with clinical measurements and consumer feedback

related to patient-specific goals. The research targets hemiparetic stroke patients with functional limitations attributed to spasticity. The study identifies changes in spasticity, limb synergy, and functional

reaching tasks using clinical and biomechanical measurements. This project aims to improve

chemodenervation techniques through the knowledge imparted by the research.
2-102 NIDRR Program Diretory FY 2003 - Health and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Delaware

A Low Cost, High Resolution Pressure Mapping System for the

Prevention of Pressure Ulcers

EM Photonics Incorporated

102 East Main Street, Suite 204

Newark, DE 19711

behrmann@emphotonics.com

Principal Investigator: Gregory P. Behrmann

Public Contact: 302/456-9003; Fax: 302/456-9004

Project Number: H133S030163

Start Date: October 1, 2003

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 03 $74,437

Abstract: This project investigates a novel optically based pressure mapping system for the prevention

of pressure ulcers as well as other medical applications. If successful, this sensor system can be inexpensively produced and provide high resolution pressure maps. Both caregivers and patients can

receive important feedback regarding physical position history and the necessity to change position.
NIDRR Program Diretory FY 2003 - Health and Function 2-103

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Oregon

An Innovative Dialysis Regeneration Cartridge for Portable

Hemodialysis

Chemica Technologies, Incorporated

325 Southwest Cyber Drive

Bend, OR 97702-1076

taku@chemica.com

www.chemica.com

Principal Investigator: Takuji Tsukamoto, PhD

Public Contact: 541/385-0355; Fax: 541/385-0390

Project Number: H133S030019

Start Date: October 1, 2003

Length: 24 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $275,219

Abstract: Many end-stage renal disease (ESRD) patients are severely limited in their mobility and

freedom of life due to the time and effort involved in receiving life-sustaining hemodialysis treatment

several times a week at clinics or hospitals. The overall objective of this project is to develop an innovative portable hemodialyzer based on a highly efficient dialysis regeneration cartridge (DRC). This

portable hemodialyzer greatly improves the quality of life for ESRD patients and their families by

allowing hemodialysis in any location. The technical objectives for this phase of research are: (1) to

perform scale-up production of the DRC and to construct the full- scale DRC, (2) to test the

biocompatibility and stability of the DRC, (3) to construct a prototype portable hemodialyzer that

contains the DRC and test in vitro, (4) to construct a mini-DRC and test its efficacy and quality in vivo

using animal models, and (5) to summarize Phase II work and evaluate the process.
Contents

Rehabilitation Engineering Research Centers (RERCs) ........................................................................ 3

Disability and Rehabilitation Research Projects .................................................................................. 33

Field-Initiated Projects (FIPs) .............................................................................................................. 45

Small Business Innovative Research (SBIR), Phase I ......................................................................... 71

Small Business Innovative Research (SBIR), Phase II ........................................................................ 85

Technology for Access and Function

Rehabilitation, biomedical engineering, and assistive technology research has

produced results that have helped people with disabilities to achieve and maintain

maximum physical function, live in their own homes, attain gainful employment,

and participate in and contribute to society. NIDRR’s research addresses a broad

range of technology, including systems of public technology, such as

telecommunications and the built environment and orphan technology for

individuals. The research program also encourages universal design practices.

NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-3

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

California

Technologies for Children with Orthopedic Disabilities

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7503 Bonita Street

Bonita Hall

Downey, CA 90242

info@ranchorep.org

www.ranchorep.org

Principal Investigator: Sam Landsberger, ScD; Donald McNeal, PhD

Public Contact: Juan Garibay, 562/401-7994 (V); Fax: 562/803-6117

Project Number: H133E003001

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $650,000; FY 01 $760,000; FY 02 $915,172; FY 03 $1,560,000

Abstract: The goal of this RERC is to improve the lives of children with orthopedic disabilities.

Activities include: (1) conducting research to advance the state of knowledge; (2) disseminating this

information to children and their parents, clinicians, and research investigators; (3) developing and

testing prototype devices that are useful and efficacious; (4) transferring prototypes that have proven

value to the marketplace; and (5) educating engineering students about the special needs of children

with orthopedic disabilities. The research and development program is focused on three of the most

important life activities of children: manipulation, mobility, and play and recreation. Three projects

address the manipulation needs of children with upper limb deficiencies; one documents current fitting

practices of children’s prosthetic clinics throughout North America, while a second develops improved

elbows and prehensors for young children. A third project adds a power assist to the mobile arm

support, a product developed and commercialized during the current grant period. The mobility

projects address the needs of children with cerebral palsy, spinal bifida, SCI, muscle disease, and other

chronic conditions that affect the child’s ability to ambulate. The RERC develops lightweight orthotic

components, evaluates the effectiveness of functional electrical stimulation to correct gait abnormalities

in children with cerebral palsy, and determines the appropriate time to provide children with wheeled

mobility. The RERC program conducts clinical trials at Rancho Los Amigos National Rehabilitation

Center, Shriners Hospital LA, and Children’s Hospital LA. This project participates in the NIDRR

Scholars program, providing motivated undergraduates with internship experience in disability research.
3-4 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

California

RERC on Spinal Cord Injury: Keep Moving: Technologies to Enhance

Mobility and Function for Individuals with Spinal Cord Injury

Los Amigos Research and Education Institute, Inc. (LAREI)

P.O. Box 3500

Downey, CA 90242

sam@ranchorep.org; rwaters@dhs.co.la.ca.us

www.larei.org

Principal Investigator: Samuel Landsburger, ScD; Robert Waters, MD, 562/401- 7994; 562/401-

7161

Public Contact: Julia LaPlount, 562/401-8111; Fax: 562/803-5569

Project Number: H133E020732

Start Date: November 1, 2002

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $899,974; FY 03 $899,932

Abstract: This RERC improves the lives of individuals with SCI by promoting their health, safety,

independence, and active engagement in daily activities. Activities include: (1) monitoring trends and

evolving product concepts that represent future directions for technologies in SCI, (2) conducting

research to advance the state of knowledge, (3) disseminating the information to the population, (4)

developing and testing prototype devices that are useful and effective and transferring them to the

marketplace, (5) advancing employment opportunities for individuals with SCI, and (6) developing

ways to expand research capacity in the field of SCI. The R&D program is focused on a key issue for

individuals with SCI, the need to maintain mobility for as long as possible in order to enhance independent function. A survey of the user population determines where areas of greatest need exist. An active

Mobile Arm Support for adults allows those with limited arm function greater independence. The

shoulder- preserving wheelchair, gait training robotic assist device, and adaptive exercise equipment

are all specifically geared to preserve or enhance mobility in individuals with SCI. A project on optimized wheelchair suspension keeps people mobile by increasing comfort and reducing tissue loading.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-5

Rehabilitation Engineering Research Centers (RERCs)

California

Smith-Kettlewell Rehabilitation Engineering Research Center

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

rerc@ski.org

www.ski.org/Rehab

Principal Investigator: John A. Brabyn, PhD, 415/345-2110

Public Contact: Deborah Gilden, PhD, 415/345-2000; Fax: 415/345-8455

Project Number: H133E001002

Start Date: August 1, 2000

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $650,000; FY 01 $650,000; FY 02 $650,000; FY 03 $750,000

Abstract: This RERC conducts research and development for persons who are blind or who have

visual impairments. For infants, the project explores a new objective means of identifying and differentiating vision and cognitive impairments using visually-evoked potentials (VEPs), facilitating the

design of optimal rehabilitation plans for each child. For individuals who have co-existing disabilities

(in addition to blindness or a visual impairment), the project explores new solutions for wheelchair

travel and various technologies for wayfinding. It also investigates independent travel technology for

those with combined visual and cognitive impairments. For the older age group, the project explores

practical tools allowing lay personnel to screen and assess visual impairments affecting problems

unique to this age group, so they can be identified and referred to appropriate clinical or rehabilitation

specialists quickly. For consumers who are deaf-blind, the project develops a new generation of

communication devices to expand the functions performed by existing products. It also explores novel

approaches to graphics access by persons who are blind or who are deaf- blind, using virtual reality,

sonification, and force feedback technologies. An innovative program of vocational and daily living

technology development includes intensive interaction with service providers and applications of

computer vision.
3-6 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

District of Columbia

Rehabilitation Engineering Research Center on Hearing Enhancement

Gallaudet University

Division of Audiology and Speech-Language Pathology

Kendall Greene

800 Florida Avenue Northeast

Washington, DC 20002

info@hearingresearch.org

www.hearingresearch.org

Principal Investigator: Matthew H. Bakke, PhD, 202/651-5335

Public Contact: Matthew H. Bakke, PhD, 202/651-5335 (V/TTY); Fax: 202/651-5324

Project Number: H133E010107

Start Date: August 1, 1998

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $900,000; FY 02 $900,000; FY 03 (No-cost extension through 7/31/2004)

Abstract: This RERC develops and evaluates technology to accommodate the needs of people with

hearing loss, and disseminates related information in a form that is understandable to consumers,

service providers, employers, and community leaders. These goals are accomplished by: (1) developing and evaluating improved, cost-effective technological aids for each of the target populations

identified; (2) developing and evaluating instrumentation for detecting hearing loss at an early age; (3)

providing improved access to modern telecommunications; (4) developing and evaluating specialized

technology for community, home, and work environments; and (5) pursuing an active program of

dissemination and training to ensure effective utilization of AT. This project participates in the NIDRR

Scholars program, providing motivated undergraduates with internship experience in disability research.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-7

Rehabilitation Engineering Research Centers (RERCs)

District of Columbia

Rehabilitation Engineering Research Center on Telerehabilitation

MedStar Research Institute

National Rehabilitation Hospital

102 Irving Street Northwest

Washington, DC 20010

michael.j.rosen@medstar.net

www.telerehab-nrh.org

Principal Investigator: Michael Rosen, PhD

Public Contact: Donal Lauderdale, 202/877-1554; Fax: 202/723-0628

Project Number: H133E990007

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $890,000; FY 99 $950,000; FY 00 $950,000; FY 01 $950,000; FY 02

$950,000; FY 03 (No-cost extension through 9/30/2004)

Other funding: FY 01 $1,040,000 (Assistive Technology Research Center, U.S. Army Medical and

Material Command)

Abstract: This RERC conducts research on various models of delivering rehabilitation services at a

distance: telerehabilitation. Its development activities focus on exploiting promising technology to

benefit people with disabilities. Research projects encompass the areas of: Telehomecare—telesupport

to caregivers of stroke victims; Telecoaching—remote jobsite coaching of persons with mental disabilities; Telehealth pain management—psychological intervention at a distance; and Behavioral Virtual

Reality—investigation and training of social and attending behaviors using virtual environment technology. Further research efforts explore integrating telerehabilitation into today’s health care delivery

system and finding effective means for extending rehabilitation services to the peoples of the Pacific

Rim. The center is also engaged in development projects focusing on Telemonitoring, passive sensing

of functional performance and health parameters using unobtrusive instrumentation; HomeTelerehab,

interactive systems for remote delivery of therapy, assessment, teaching, and demonstration at home;

and Teleplay, therapeutic play, including embedded teleassessment for children with disabilities. The

Center establishes the following National Resource activities: (1) a Home Care and Telerehabilitation

Technology Center; (2) a Home Care and Telerehab Education/Training Center; and (3) a Virtual

Library on Telerehabilitation that serves as the focal point for information dissemination on telerehabgermane practice, policy, and technology. The work of the Center spans three institutions: The National Rehabilitation Hospital, The Catholic University of America, and Sister Kenney Rehabilitation

Services.
3-8 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

District of Columbia

Rehabilitation Engineering Research Center on Hearing Enhancement

Gallaudet University

Division of Audiology and Speech-Language Pathology

800 Florida Avenue, NE

Washington, DC 20002

matthew.bakke@gallaudet.edu

www.hearingresearch.org

Principal Investigator: Matthew H. Bakke, PhD, 202/651-5335

Public Contact: 202/651-5335 (V/TTY); Fax: 202/651-5324

Project Number: H133E030006

Start Date: October 1, 2003

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $949,999

Abstract: The activities of this RERC can be divided into five major component projects each consisting of multiple research and/or development projects with clearly stated objectives. Component A: (1)

develops and evaluates new methods for field evaluation and fitting of hearing aids; (2) develops and

evaluates techniques to enhance auditory self-monitoring; and (3) develops methods for predicting the

speech-to- interference ratio and intelligibility of speech for a hearing aid when used with a wireless

telephone. Component B conducts a needs assessment survey of people who use hearing technologies

and evaluate the use of Bluetooth technology as a means of improving and expanding wireless connection to a hearing aid. Component C investigates environmental factors affecting children’s speech

recognition abilities in classroom settings. Component D investigates the use of distortion product

otoacoustic emission and reflectance for diagnosis of hearing loss and tinnitus; and creates and standardizes sets of synthesized nonsense syllables for use in hearing aid research. Component E develops

a new, innovative model for the delivery of aural rehabilitation (AR) services to adults with hearing

loss. In addition the RERC conducts a program of training and dissemination that will reach a diverse

audience of people, both consumers and professionals.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-9

Rehabilitation Engineering Research Centers (RERCs)

Florida

Rehabilitation Engineering Research Center on Technology for

Successful Aging

University of Florida

101 South Newell Drive, Suite 2101

Gainesville, FL 32611

wmann@hp.ufl.edu

www.rerc.ufl.edu

Principal Investigator: William C. Mann, PhD, 352/392-2617

Public Contact: Kathy Locklear, Information Coordinator, 352/392-2617 (V/TTY)

Project Number: H133E010106

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 01 $900,000; FY 02 $900,000; FY 03 $899,999

Abstract: The RERC-Tech-Aging conducts research, development, education, and information

dissemination work on technology for successful aging. Projects of the RERC focus on the closely

related areas of communications, home monitoring, and “smart” technologies. The technology driving

the focus for this RERC is developing rapidly and requires an understanding of current and emerging

technology areas, including wireless technology, computers, sensors, user interfaces, control devices,

and networking. Successful integration of this technology into products and systems for older persons

requires an understanding of their complex health, independence, and quality-of-life issues. The

RERC-Tech-Aging tests currently available home monitoring products and demonstrates their effectiveness in relation to independence, quality of life, and health related costs. The RERC-Tech-Aging

also identifies needs and barriers to home monitoring and communication technology, and addresses

needs of special populations including rural-living, elders, and people aging with disability. The

RERC-Tech-Aging brings together national expertise to meet this challenge, including major universities, industry leaders working in this area, major aging or aging-related organizations, major federal

agencies that relate to funding or services in this area, other NIDRR-funded RERCs and RRTCs, and

service-related organizations that assist in identifying study participants.
3-10 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Mobile Wireless

Technologies for Persons with Disabilities

Georgia Centers for Advanced Telecommunications Technology (GCATT)

Georgia Institute of Technology

250 - 14th Street NW

Atlanta, GA 30318

rerc@gcatt.gatech.edu

www.wirelessrerc.org

Principal Investigator: Helena Mitchell, PhD; Michael Jones, PhD (Shepherd Center); John Peifer

(Georgia Tech), 404/894-0058 (Mitchell); 404/352-2020 (Jones); 404/894-7028 (Peifer)

Public Contact: Saliman Zook, 404/385-4075; Fax: 404/894-1445

Project Number: H133E010804

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $1,000,000; FY 02 $1,000,000; FY 03 $1,000,000

Abstract: This RERC develops appropriate and effective applications of wireless technologies that

enhance the independence of people with disabilities. With an overall goal of promoting independence

and autonomy of people with disabilities, the RERC has two primary aims: (1) ensure equitable access

to mobile wireless products and services by people with disabilities of all ages and abilities; and (2)

investigate promising applications of mobile wireless technologies in support of employment, independent living, and community integration of people with disabilities. To accomplish these aims, the

RERC is organized into three main sections: (1) the Research Section investigates needs, policies, and

promising applications of mobile wireless technologies to promote independence. Research initiatives

include assessment of user needs, evaluation of emerging technologies, and policy initiatives that

influence the practices, policies, and regulations that affect accessibility of wireless technologies, (2)

the Development Section includes projects that address universal access, investigation of new applications of wireless technologies, and innovative design solutions to support independent living of people

with disabilities, (3) the Training and Dissemination Section promotes the synthesis of new knowledge

into practice.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-11

Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Workplace

Accommodations

Georgia Institute of Technology

Center for Assistive Technology & Environmental Access

490 10th Street, NW

Atlanta, GA 30318

workrerc@catea.org

www.workrerc.org

Principal Investigator: Karen Milchus; Jon Sanford, 404/894-0393

Public Contact: Karen Milchus, 866/284-9675 (AT4-WORK); 404/894-0600; Fax: 404/894-9320

Project Number: H133E020720

Start Date: November 1, 2002

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $899,997; FY 03 $900,000

Abstract: This RERC identifies, designs, and develops devices and systems to enhance the workplace

productivity of people with disabilities. Universal design is a primary focus of the Center—making the

design of products and environments usable by all workers to the greatest extent possible, without the

need for adaptation or specialized design. The RERC’s research projects evaluate existing workplace

products and services and determine areas where further product development is needed. The Center

also studies archival materials to identify factors that contribute to successful or unsuccessful outcomes,

and analyzes policies and practices that may influence the nature and availability of workplace accommodations for persons with disabilities. The RERC’s development activities focus on Remote Services

and Universal Design in the Workplace. The Remote Services projects investigate ways that remote

technologies such as videoconferencing and telework can be used to facilitate employment and provide

technical support services to people with disabilities. The Universal Design projects work with manufacturers to develop new generations of universally designed and accessible products. Digital human

modeling tools developed by the project provide visualizations of products or systems with human

interaction and movement and reduce the need for preliminary physical prototypes. Products are

developed for workers in office, manufacturing, retail/sales, service industry, and other environments.

Finally, training, technical assistance, and dissemination activities on workplace accommodations and

universal design promote the transfer of new knowledge into practice.
3-12 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Wheeled Mobility

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

randy.bernard@arch.gatech.edu

www.catea.org

Principal Investigator: Stephen H. Sprigle, PhD; Randy Bernard, 404/385-4302 (Sprigle); 404/385-

4691 (Bernard)

Public Contact: Randy Bernard, 404/385-4691; Fax: 404/894-9320

Project Number: H133E030035

Start Date: November 1, 2003

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 03 $949,988

Abstract: The goal of this RERC is to undertake a major shift in the way wheeled mobility is conceptualized and understood, from the design of assistive devices that enable some individuals to perform

some activities, to the design of a broad range of interventions that enable as many individuals as

possible to actively engage and participate in everyday community life. Research activities include: (1)

User Needs and Design Input uses participatory focus groups to identify needs of wheelchair users; (2)

User Needs of Older Adults assesses the needs of older adults living at home and in other residential

settings; (3) Effects of Environment and Mobility Technology on Participation and Activity measures

the influences of environmental barriers and specialized wheelchair technology on participation and

activity in everyday life; (4) Efficacy of Animation and Visualization Training uses computer simulation techniques to investigate their efficacy in improving mobility training; and (5) Clinical and Functional Implications of Seating Standards and Guidelines studies the relationship between standardized

measures of cushion performance and actual impact on wheelchair users. Development efforts include:

(1) development and marketing of new mobility devices in collaboration with industry design partners;

(2) development of a wheelchair for frail elders that can be used in any residential environment; (3)

interventions to overcome barriers to participation including guidelines and technologies to help

wheelchair users overcome environmental and technological barriers; (4) development of animation

and visualization training through computer simulations to improve training in transfers and outdoor

mobility; and (5) development of valid wheelchair cushion test methods which enables clinicians to

prescribe appropriate wheelchair cushions based on positioning and load distribution.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-13

Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Prosthetics and

Orthotics

Northwestern University

Rehabilitation Engineering Research Program and Prosthetics Research Laboratory

345 East Superior Street, Room 1441

Chicago, IL 60611

reiu@northwestern.edu; d-childress@northwestern.edu

www.repoc.northwestern.edu

Principal Investigator: Dudley S. Childress, PhD, 312/238-6500

Public Contact: Resource Unit Help Line, 312/238-6524 (V); 312/238-6530 (TTY); Fax: 312/238-

6510

Project Number: H133E980023

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $900,000; FY 99 $900,000; FY 00 $900,000; FY 01 $900,000; FY 02

$900,000; FY 03 (No-cost extension through 9/30/2004)

Abstract: This RERC studies human performance as assisted by prosthetic and orthotic systems with

the aim of engineering improved prostheses and orthoses through deeper scientific understanding of

their function. Research and development activities include: (1) development of automated alignment

methods for prostheses and orthoses, based on characterization of foot rocker shape during walking;

(2) investigations of shock absorption properties of the human locomotor system and of prosthetic/

orthotic systems; (3) mechanical considerations for improved crutch ambulation; (4) studies of standard

human walking; (5) determination of prosthetic foot roll-over shapes and other characterizations; (6)

examination of the effects of shoes on kinematic and kinetic parameters of gait; (7) development of a

portable, real-time, 3-D gait evaluation system (3-D Direct Ultrasound Ranging System) that is able to

provide estimates of walking quality (outcomes) using a simple technology; (8) development of a

computer- based visualization aid that displays prosthetic arms on the human body before the arms are

fabricated, to assist with decision making and fitting; (9) study of factors affecting reach when using a

trans-humeral prosthesis; (10) development of humeral rotators, particularly for persons with bilateral

trans-humeral limb loss; (11) advancement of design of prosthetic and orthotic (P & O) components

and systems to technology transfer and utilization; (12) development and delivery of validated datagathering instruments and a prototype database for collection, storage, and processing short and longterm information concerning outcomes of P & O fitting; (13) collaboration with the RERC on Land

Mines and others engaged in related research; (14) graduate education (including persons with disability) in biomedical engineering, concentrating in prosthetics and orthotics; and (15) publication of

research work in scholarly journals; presentations at conferences; and interaction with consumers,

clinicians, engineers, scientists, and the general public through a quarterly newsletter, telephone,

Internet, and through personal meetings.
3-14 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center: Improved Technology

Access for Land Mine Survivors

Center for International Rehabilitation

351 East Huron, Second Floor Annex

Chicago, IL 60611

h-casanova@nwu.edu

www.cirnetwork.org

Principal Investigator: William Kennedy Smith, MD; Dudley S. Childress, PhD

Public Contact: Hector Cassanova, Project Coordinator, 312/926-0030; Fax: 312/926-7662

Project Number: H133E980031

Start Date: November 1, 1998

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 98 $850,000; FY 99 $850,000; FY 00 $850,000; FY 01 $850,000; FY 02

$850,000; FY 03 (No-cost extension through 10/31/2004)

Abstract: This RERC is active in research, development, and demonstration; consumer surveys;

education and training; utilization activities; technical assistance; and dissemination relating to improved technology access for land mine survivors. To accomplish these activities, the project: (1)

maintains a database of rehabilitation service providers and assessments of current prosthetic technologies; (2) develops or adapts technical advances in the design, production, and delivery of appropriate

assistive devices; (3) designs and disseminates education, training, management, and outcome programs; (4) acts as a clearinghouse, providing researchers, educators, administrators, and funders access

to resources that have been developed to facilitate service delivery to amputees in the United States and

other countries; (5) disseminates information through an international newsletter and international

journals, telecommunications, presentations at international meetings, training programs, consultations,

open discussions, and other types of communication; and (6) develops and disseminates specific

programs and products that address the needs of amputees and service providers in low-income countries where the vast majority of land mine survivors live. The RERC also establishes an Advisory

Council that includes consumers and practitioners.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-15

Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Recreational

Technologies and Exercise Physiology Benefiting Persons with

Disabilities (RERC Rec-Tec)

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Suite 712

Chicago, IL 60608-6904

jrimmer@uic.edu

Principal Investigator: James H. Rimmer, PhD

Public Contact: 312/413-9651; Fax: 312/355-4058

Project Number: H133E020715

Start Date: November 1, 2002

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $899,536; FY 03 $899,725

Abstract: This program researches access to recreational opportunities and physical endurance of

people with disabilities, targeting four primary areas: (1) increased access to fitness and recreation

environments; (2) interventions to increase physical activity and recreation participation; (3) adherence

strategies to reduce physical activity relapse and dropout rates; and (4) randomized clinical trials to

evaluate improvements in health and function. Research and development projects include: (1) a

comprehensive needs assessment that involves ongoing assessment of consumer needs as they pertain

to existing and emerging recreational and fitness technologies; (2) research on the use of information

technology and a newly designed environmental accessibility instrument for facilitating access to

recreational and fitness environments and promoting improved health and function; (3) exercise physiology research on the use of “teleexercise” for promoting participation and for monitoring intensity and

physiological/psychological outcomes of home-based exercise programs; (4) development of broadly

applicable modification kits for retrofitting cardiovascular exercise equipment and determining the

efficacy of the new adaptations in improving fitness, development of virtual exercise environments to

promote exercise participation and adherence and to facilitate monitoring of health outcomes; (5)

development of technology to allow users adaptive control of exercise machines; and (6) development

of an online Rec-Tec solutions database on currently available recreational and fitness technologies

allowing the RERC to produce a rapid and sustained impact by using information technology to make

available solutions more accessible to consumers. Two training projects promote capacity building for

future recreation, fitness, exercise physiology, engineering, and rehabilitation professionals, and two

additional training projects support professional development.
3-16 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

Illinois

RERC on Rehabilitation Robotics and Telemanipulation: Machines

Assisting Recovery from Stroke (MARS)

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1406

Chicago, IL 60611-4496

medevitt@rehabchicago.org

www.smpp.nwu.edu/MARS/mars.html

Principal Investigator: W. Zev Rymer, MD, PhD

Public Contact: Mary-Ellen Devitt, 312/238-3919; Fax: 312/908-2208

Project Number: H133E020724

Start Date: November 1, 2002

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 02 $805,453; FY 03 $874,845

Abstract: This program centers its research and development on restoring function in hemispheric

stroke survivors. Five projects assess five different approaches that have the potential to improve

performance of the upper extremity, and one project attempts to restore locomotion. These projects

include: (1) robotic therapy for force training of the upper extremity in chronic hemiparetic stroke; (2)

gait restoration in hemiparetic stroke patients using goal-directed, robotic-assisted treadmill training; (3)

development of a robotic system with an augmented reality interface for rehabilitation of brain-injured

individuals; (4) rehabilitation of finger extension in chronic hemiplegia; and (5) a home-based

telerehabilitation system for improving functional hand and arm movement recovery following stroke.

In addition to these projects, the RERC develops tools for training research and development of a

variety of client populations including medical students, physician residents, graduate students in

engineering and neuroscience, and allied health clinicians, including physical and occupational therapists. The broad intent is to develop devices that assist the therapist in providing treatments that are

rationally based, intensive, and long in duration. This project is a collaboration of the Rehabilitation

Institute of Chicago, the National Rehabilitation Hospital in Washington, D.C., Catholic University,

the University of Illinois at Chicago, and the University of California at Irvine.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-17

Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center in Prosthetics and

Orthotics

Northwestern University

Feinberg School of Medicine

345 East Superior Street, Room 1441

Chicago, IL 60611

reiu@northwestern.edu; d-childress@northwestern.edu

www.repoc.northwestern.edu

Principal Investigator: Dudley S. Childress, PhD, 312/238-6500

Public Contact: Resource Unit Help Line, 312/238-6524 (V); 312/238-6530 (TTY); Fax: 312/238-

6510

Project Number: H133E030030

Start Date: October 1, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,998

Abstract: This Center conducts ten research projects, three of which are pilot studies. In the area of

human locomotion the objectives are to conduct quantitative studies that include non-disabled gait,

modeling of gait, roll-over shape influence on transtibial amputee gait, gait initiation, shock absorption

studies, the role of the spine in walking, transfemoral socket design studies, and evaluation of stancecontrol orthotic knee joints. Pilot studies, where preliminary data is not available, are proposed on

partial foot prothesis/orthosis systems, on evaluation of Ankle Foot Orthoses (AFOs) and on the design

of a Shape & Roll foot for children. Six developmental projects include a simple gait monitoring

instrument (Direct Ultrasound Ranging System), a new prosthetic ankle joint that adapts to inclines,

and a manual through which individuals in low-income countries can make their own artificial feet. In

addition, two upper-limb prosthetics development projects are proposed that deal with reaching,

manipulation, and grasping. Finally, an outcomes measurement tool is developed for prosthetics and

orthotics (P&O) facilities in their reporting to the American Board of Certification (ABC). The vision

for this RERC is to improve the quality of life for persons who use prostheses and orthoses through

creative applications of science and engineering to the P&O field. The goal is to uncover new knowledge and understanding in P&O and to bring more quantification to the field, which will enable them

to develop new concepts and devices to improve the quality, cost- effectiveness, and delivery of P&O

fittings.
3-18 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Technology Access for

Land Mine Survivors

Center for International Rehabilitation

351 East Huron, Second Floor Annex

Chicago, IL 60611

kreisinger@cirnetwork.org

www.cirnetwork.org

Principal Investigator: William Kennedy Smith, MD; Kim D. Reisinger, PhD; Yeongchi Wu, MD,

312/926-0030

Public Contact: Maggie Coleman, Communications Officer, 312/926-0014; Fax: 312/926-7662

Project Number: H133E030017

Start Date: November 1, 2003

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 03 $950,000

Abstract: The Center strives to improve the quality and availability of amputee and rehabilitation

services for landmine survivors by focusing on the development of “appropriate technology”, i.e.

technology that is most suitable to the limited technical and human resources available in most mineaffected regions through the application of research methodologies, the development of mobility aids,

and the creation of educational materials, all of which are designed specifically for mine- affected

populations and disseminated through a network of rehabilitation service providers in mine-affected

regions. Laboratory-based research projects investigate issues of importance relating to transtibial (TT)

alignment, ischial containment socket trim lines as they relate to the gait of transfemoral (TF) amputees,

and the evaluation of a non-toxic resin for the direct lamination of prosthetic sockets. Field-based

research evaluates an anatomically based transtibial alignment methodology and a wheelchair prototype manufacturing and dissemination strategy. Development projects, many of which contain research

components, can be classified into two areas: those that improve the service delivery through improved

fabrication techniques, and those that develop appropriate prosthetic components and mobility aids. In

order to promote the successful transfer of techniques and technologies that are developed, the RERC

creates training materials that describe the manufacture, assembly, and use of the technique or devices

developed under the research and development program. Additionally, because the current number of

trained prosthetic technicians in developing countries is far from sufficient to adequately meet the

needs of landmine survivors, the center produces education and training materials covering the basic

science of prosthetics and orthotics. All materials are adapted to the specific languages, culture and

needs of the mine-affected regions served by the RERC and distributed through a blended distance

learning network.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-19

Rehabilitation Engineering Research Centers (RERCs)

Michigan

Rehabilitation Engineering Research Center on Ergonomic Solutions

for Employment

University of Michigan

Center for Ergonomics

1205 Beal Avenue

Ann Arbor, MI 48109-1217

umrerc@umich.edu

umrerc.engin.umich.edu

Principal Investigator: Thomas J. Armstrong, PhD, 734/763-3742

Public Contact: Sheryl S. Ulin, PhD, 734/615-2683; Fax: 734/764-3451

Project Number: H133E980007

Start Date: August 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000; FY 01 $800,000; FY 02

$800,000; FY 03 (No-cost extension through 1/31/2004)

Abstract: This RERC combines ergonomic interventions, work and worksite modifications, assistive

technologies, and medical interventions to facilitate placement of workers with disabilities, and helps

prevent development of subsequent musculoskeletal illnesses and injuries. The Model System establishes a database to include information on a broad range of interventions and case examples as well as

procedures for assessing workers, analyzing jobs, identifying accommodation needs, and selecting

interventions, including ergonomic technologies. The comprehensive approach involving rehabilitation

medicine and ergonomics culminates in a web-based Model System that can be used by rehabilitation

professionals, employers, consumers, and organizations.
3-20 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering Research Center on Technology Transfer

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

322 Kimball Tower

Buffalo, NY 14214

jimleahy@acsu.buffalo.edu

cosmos.buffalo.edu/t2rerc

Principal Investigator: Joseph Lane

Public Contact: James Leahy, 716/829-3141 (V); 800/628-2281 (TTY); Fax: 716/829- 2420

Project Number: H133E980024

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $900,000; FY 99 $900,000; FY 00 $900,000; FY 01 $900,000; FY 02

$900,000; FY 03 (No-cost extension through 9/30/2004)

Abstract: This RERC improves the quality of life for people with disabilities by: (1) advancing the

methods of technology transfer through research, (2) transferring technologies into products through

development, and (3) facilitating the commercialization of new and improved assistive devices. These

three outcomes are accomplished through collaborations with academic, industrial, consumer, and

government stakeholders. The Center, a partnership of technical, marketing, and consumer expertise

and networks: (1) conducts research on the technology transfer process as it is applied to the field of

assistive technology, and develops, validates, and disseminates comprehensive models of technology

transfer; (2) applies the research results by implementing the technology transfer process through a

development program; (3) identifies and transfers breakthrough technologies to industry through a

demand-pull model, transferring at least three technologies annually; (4) identifies and transfers useful

new inventions to the marketplace through a supply-pull model, transferring three to five products

annually; (5) delivers training, dissemination, and technical assistance programs to stakeholders in the

field; and (6) develops an online technology transfer course consisting of eight training modules

accessible through the project’s web site. The dissemination program includes a state-of-the-practice

conference and the development of a technology transfer program to be offered for presentation in year

three. The Center functions as an intermediary and a catalyst, improving the process while expanding

the network of stakeholders involved with the field. The end result: new and improved AT products

available in the marketplace that benefit professional service providers, family members, and people

with disabilities.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-21

Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering and Research Center (RERC) on Universal

Design and the Built Environment at Buffalo

State University of New York (SUNY) at Buffalo

Department of Architecture

378 Hayes Hall

Buffalo, NY 14214

rercud@ap.buffalo.edu

www.ap.buffalo.edu/idea

www.ap.buffalo.edu/rercud

Principal Investigator: Edward Steinfeld, ArchD, 716/829-3485, ext. 327

Public Contact: Danise Levine, 716/829-3485, ext. 330; Fax: 716/829-3861

Project Number: H133E990005

Start Date: November 1, 1999

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $599,965; FY 00 $599,952; FY 01 $599,932; FY 02 $799,835; FY 03

$799,953

Abstract: The RERC on Universal Design and the Built Environment promotes the adoption of

universal design. Research programs include the Prototype Anthropometric Database Project, a research database on anthropometrics of wheelchair users for application to ergonomic design, and The

Buildings in Use Project that demonstrates the benefits of universal design by conducting post-occupancy evaluations of buildings currently in use. Product development efforts include development of

prototypes for innovative universally designed products, evaluation and testing of these prototypes, and

commercialization assistance to facilitate bringing each prototype to market. The Visitability Initiative

conducts training and action research in eight cities to develop visitability demonstration projects, and

is a collaboration with Concrete Change, a consumer advocacy organization focusing on making

housing “visitable” by people with disabilities. The RERC’s activities also include universal design

education and technical assistance, along with publication and dissemination of universal design

resources.
3-22 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering Research Center on Technology Transfer

(T2RERC)

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

322 Kimball Tower

Buffalo, NY 14214-3079

jimleahy@acsu.buffalo.edu

cosmos.buffalo.edu/t2rerc

Principal Investigator: Steve Bauer, PhD, 716/829-3141, ext. 117

Public Contact: James Leahy, 716/829-3141 (V); 800/628-2281 (TTY); Fax: 716/829- 2420

Project Number: H133E030025

Start Date: October 1, 2003

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 03 $949,999

Abstract: The activities of this project transfer and commercialize new and improved assistive devices,

conduct research to improve technology transfer practice, and support other stakeholders involved in

the technology transfer process. Four research projects investigate innovative ways to facilitate and

improve the process of technology transfer for all stakeholders: (1) Identify Innovative Technology

Transfer Practices - draws critical success factors from examples of retrospective and prospective AT

transfer case studies in various sectors; (2) Identify Innovative Technology Transfer Policies - traces the

outputs and outcomes of Federal transfer programs supporting AT related projects and assesses their

efficacy; (3) Facilitate AT Industry Innovation through Focused Market Research - provides a context

for transfer opportunities involving the AT industry and for public policy decision making; and (4)

Assess the Efficacy of Transferred Products - determines the extent to which products previously

transferred through the T2RERC impact the functional capabilities of consumers. Four development

projects increase the number and quality of successful transfers from RERC’s and other sources: (1)

Transfer Products through a Supply Push Approach - facilitates the movement of new or improved

prototype inventions to the marketplace through licenses, sales, or entrepreneurial ventures; (2) Transfer Technologies through a Demand Pull Approach - validates technology needs within the AT industry and introduces advanced technology solutions to address those needs; (3) Improve the Accessibility

of New Mainstream Products - extends participatory research to integrate consumers’ functional

requirements into the design of new mainstream products; and (4) Facilitate RERC Transfer Activity

Through Informatics - establishes a pilot informatics infrastructure and assesses its utility for increasing

communication, collaboration, and transfers between RERC’s.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-23

Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center on Communication

Enhancement

Duke University

Department of Surgery

Division of Speech Pathology and Audiology

Duke University Medical Center, Box 3888

Durham, NC 27710

aac-rerc@mc.duke.edu

www.aac-rerc.com

Principal Investigator: Frank DeRuyter, PhD, 919/684-6271

Public Contact: Kevin Caves, ME, ATP, 919/681-9983; Fax: 919/681-9984

Project Number: H133E980026

Start Date: November 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $899,996; FY 99 $899,990; FY 00 $900,000; FY 01 $900,000; FY 02

$900,000; FY 03 (No-cost extension through 1/31/2004)

Abstract: This RERC uses innovative communications technologies to benefit researchers, engineers,

rehabilitation service providers, developers, and users of alternative and augmentative communication

(AAC) technologies. The project: (1) investigates attitudinal barriers toward technology use by elderly

people with communication disorders, their listeners, and service providers; (2) studies the organizational strategies of adult AAC users to determine if preferences are predictive of performance using

AAC; (3) studies how to improve AAC technologies for young children with significant communication disorders by evaluating learning demands and functional performance (also involves development

of design specifications); (4) evaluates and enhances communication rate efficiency and effectiveness

through the development of procedures and software technology that simulates and measures the

performance of AAC technologies; (5) identifies barriers to employment, describes strategies to overcome them, documents design specifications for AAC technologies, and describes action plans to

achieve successful employment outcomes; (6) increases employment opportunities for graduates of an

employment and AAC program; and (7) develops a coordinated program that monitors and seeks out

technology developments in both commercial form and prerelease development stages that affect the

engineering and clinical AAC field.
3-24 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center on Communication

Enhancement

Duke University

Department of Surgery

Division of Speech Pathology and Audiology

Duke University Medical Center, Box 3888

Durham, NC 27710

aac-rerc@mc.duke.edu

www.aac-rerc.com

Principal Investigator: Frank DeRuyter, PhD, 919/684-6271

Public Contact: Kevin Caves, ME, ATP, 919/681-9983; Fax: 919/681-9984

Project Number: H133E030018

Start Date: November 1, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,977

Abstract: The mission of this RERC is to assist people who use AAC technologies in achieving their

goals across environments. The goals and objectives of the RERC are to advance and promote AAC

technologies through the outputs and outcomes of research and development activities and to support

individuals who use, manufacture, and recommend these technologies in ways they value. Research

projects cover the following areas: (1) improving AAC technology to better support societal roles; (2)

enhancing AAC access by reducing cognitive/linguistic load; and (3) enhancing AAC usability and

performance. Projects address issues of literacy, telework, specialized vocabulary, contextual scenes

and intelligent agents, improving interface performance, and monitoring and simulating communication

performance. Development activities include: (1) technology and policy watch; (2) new interfaces; and

(3) reducing the cognitive/linguistic burden on AAC users. Activities address monitoring emerging

technologies, standards, and policies; technologies to supplement intelligibility of residual speech,

dysarthric speech, and gesture recognition; brain interface; AAC WebCrawling; and enhancing the role

of listeners in AAC interactions.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-25

Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center (RERC) on Universal

Design and the Built Environment at NCSU

North Carolina State University

Center for Universal Design

104 Brooks Hall, 50 Pullen Road

Campus Box 8613

Raleigh, NC 27695-8613

cud@ncsu.edu

www.design.ncsu.edu/cud

Principal Investigator: Laurie Ringaert, 919/515-8552

Public Contact: Sallie Haile, 800/647-6777 (V/TTY); 919/515-8547 (V/TTY, information requests

only); Fax: 919/515-7330

Project Number: H133E990002

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $399,989; FY 00 $399,967; FY 01 $399,955; FY 02 $599,914; FY 03

$389,965

Abstract: This RERC improves the accessibility and usability of the built environment and advances

the field of universal design. To achieve its goals, the RERC conducts an integrated program of research and development programs, training programs, and a comprehensive program of information

and referral and technical assistance. The major Center research project is developing multidisciplinary

environmental assessment tools to evaluate the complex and dynamic relationship between the individual and the environment. Another research project is documenting a set of case studies of successful

universal design implementations. Development projects include creating model architectural plans and

products that demonstrate maximum universal usability. Training activities include postsecondary and

continuing education and supporting the biennial international conference on universal design.
3-26 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

Oregon

National Center for Accessible Public Transportation

Oregon State University

Apperson Hall 202

Corvallis, OR 97331-2302

katharine.hunter-zaworski@oregonstate.edu

Principal Investigator: Katharine Hunter-Zaworski, PhD

Public Contact: 541/737-4982; Fax: 541/737-3052

Project Number: H133E030009

Start Date: October 1, 2003

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 03 $949,479

Abstract: This RERC addresses the need for improvements in the accessibility of public transportation. This center is both important and timely because of major changes in the travel industry, and the

need to adapt to those changes in a way that provides safe and dignified travel for persons with disabilities. The transportation focus of this RERC is inter-city travel via air, rail, and bus. Air, rail, and

over-the- road buses (OTRB) account for nearly all of the inter-city public transportation. Accessibility

issues focus on persons with mobility, agility, and hearing disabilities and account for a large percentage of persons with disabilities. Two areas of research are addressed: (1) the biomechanics of wheelchair transfers in confined spaces; and (2) the perceptions, reactions, and attitudes of subjects towards

existing and proposed accessibility solutions. The biomechanics studies include the use of a sophisticated six-camera motion analysis system in conjunction with force plates to determine the motions and

forces involved in dependent and independent transfers in confined spaces, such as an aircraft aisle.

The survey-based study includes comprehensive surveys of six different groups that are directly

involved with accessibility issues including travelers with disabilities, non-travelers with disabilities,

and employees of airlines and airports, OTRB operators, OTRB manufacturers, aircraft manufacturers,

and rail operators. Drawing on results of their research, the RERC focuses on four development topics:

(1) vehicle boarding technologies; (2) open caption communications systems; (3) single-aisle-vehicle

accessible lavatories; and (4) passenger assistance training tools and techniques.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-27

Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Wheeled Mobility

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

Forbes Tower, Suite 5044

Pittsburgh, PA 15260

dbrienza@pitt.edu

www.rercwm.pitt.edu

Principal Investigator: David M. Brienza, PhD; Clifford Brubaker, PhD

Public Contact: Mary Jo Geyer, PhD, Associate Director, 412/383-6571 (V); 412/383-6598 (TTY);

Fax: 412/383-6597

Project Number: H133E990001

Start Date: January 1, 1999

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $900,000; FY 00 $900,000; FY 01 $900,000; FY 02 $1,064,561; FY 03

$115,743

Abstract: The RERC on Wheeled Mobility investigates the use of dynamic seating for reducing

spasticity and enhancing seating comfort; investigates the biomechanical characteristics of soft tissue

related to the risk of developing pressure ulcers and the relationship between pressure measurements

and pressure ulcer incidence, develops and validates the use of outcomes measures for seating and

mobility intervention; and investigates the use of the web as a seating decision support tool for consumers. This project also develops and evaluates a comparative data source for use in decision support

of wheelchair selection, an interface for integrating external devices with powered wheelchairs; wheelchair seating standards, standardized postural measures, injury prevention wheelchair technologies, and

enhanced controls for powered wheelchairs.
3-28 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Wheelchair

Transportation Safety

University of Pittsburgh

School of Rehabilitation and Health Sciences

Department of Rehabilitation Science and Technology

Forbes Tower, Suite 5044

Pittsburgh, PA 15260

ginaber@pitt.edu

www.rercwts.pitt.edu

Principal Investigator: Gina E. Bertocci, PhD, 412/383-6595

Public Contact: Jean Webb, 412/383-6586; Fax: 412/383-6597

Project Number: H133E010302

Start Date: November 1, 2001

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $868,840; FY 02 $899,057; FY 03 $897,745

Abstract: This RERC aims to improve the safety of wheelchair users who remain seated in their

wheelchair while using public and private motor-vehicle transportation. RERC tasks investigate and

develop new wheelchair tiedown and occupant restraint system technologies, including wheelchairintegrated restraints and universal docking concepts, that enable wheelchair users to secure and release

their wheelchair independently and quickly, and use an effective occupant restraint system without the

need for assistance. The RERC also researches the issues and factors involved in providing improved

occupant protection to wheelchair-seated drivers and passengers in rear and side impacts, and uses a

multifaceted approach, including in-depth investigations of real-world accidents, to investigate the

incidence, severity, and causes of injuries to wheelchair-seated occupants in different sizes of vehicles

and in different types of crashes and non-impact incidents experienced during vehicle motion. In

particular, this RERC explores the need for, and suitability of, using different levels of wheelchair

securement and occupant restraint in larger public transit vehicles, with the goal of recommending and

developing equipment and systems that provide for a safe ride and that are more compatible with the

operational needs of the transit environment. The program includes a comprehensive research and

development effort that involves consumers, manufacturers, students, clinicians, transport providers,

and rehabilitation technology experts. The RERC also has active programs of information dissemination, training, and technology transfer using personnel, mechanisms, and facilities that have been

previously established at the University of Pittsburgh/University of Michigan.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-29

Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Information

Technology Access

University of Wisconsin/Madison

Trace Research and Development Center

2107 Engineering Centers Building

1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

trace.wisc.edu/itrerc

Principal Investigator: Gregg C. Vanderheiden, PhD, 608/263-5788

Public Contact: Kate Vanderheiden, 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E980008

Start Date: June 12, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $1,350,000; FY 99 $1,350,000; FY 00 $1,350,000; FY 01 $1,350,000; FY

02 $1,350,000; FY 03 No-cost Extension through 9/30/2003

Abstract: This RERC improves access by individuals with all types, degrees, and combinations of

disabilities to a wide range of technologies, including computers, ATMs, kiosks, point-of-sale devices

and smartcards, home and pocket information appliances, Internet technologies (XML, XSL, CSS,

SMIL, etc.), intranets, and 3-D and immersive environments. As one component in a larger system of

consumers, researchers, industry, and policy and public agencies, the Trace Center’s program is designed to work within the existing structure, supporting other components and coordinating its efforts

to address the functioning of the whole. The program identifies strategies that can be used by industry

to broaden the user base for their standard products, so individuals with as broad a range of abilities as

possible are able to use standard products directly. Further, the Center targets specific compatibility and

interconnection standards work to ensure that people who cannot use products directly are able to

operate them using assistive technologies. The Center focuses on the use of targeted projects and

collaboration, both national and international, to carry out the research, development, information

dissemination, training, and standard-setting activities required. The approach is intended to be flexible,

forward-looking, and broad in scope, yet focused on key access issues as defined by its consumer

constituency and its research programs.
3-30 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Telecommunication

Access

University of Wisconsin/Madison

Trace Center, College of Engineering

2107 Engineering Centers Building

1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

trace.wisc.edu/telrerc

Principal Investigator: Gregg C. Vanderheiden, PhD (Trace); Judy Harkins, PhD (Gallaudet

University), 608/263-5788 (Trace); 202/561-5257 (Gallaudet)

Public Contact: Kate Vanderheiden, 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E990006

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $675,000; FY 00 $675,000; FY 01 $675,000; FY 02 $675,000; FY 03

$750,000

Abstract: This RERC identifies telecommunication access barriers in current and future technologies,

work with others in the field to identify solution strategies, test them, implement any necessary standards, and assist industry in transferring the ideas into their commercial products. Activities of the

Center include research, applied research and development, training and technical assistance, and

dissemination and utilization. Technologies being addressed include: (1) customer premises equipment

(CPE) of all types, including phones, video phones, pagers, messaging systems, etc.; (2) telecommunication systems and services, including voice mail, interactive voice response systems, etc.; (3) network

topologies; (4) telecommunications standards; and (5) next-generation multimedia telecommunication

systems, including telecollaboration, virtual meetings, etc. The primary focus is on making these

systems directly usable by people with all types and degrees of disability. A secondary focus is ensuring compatibility with assistive technologies such as TTYs, assistive listening devices, alternative input

devices, and devices with alternative displays.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-31

Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Universal Interface and

Information Technology Access

University of Wisconsin/Madison

Trace Research and Development Center

2107 Engineering Centers Building

1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

trace.wisc.edu/itrerc

Principal Investigator: Gregg C. Vanderheiden, PhD, 608/263-5788

Public Contact: Kate Vanderheiden, 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E030012

Start Date: October 1, 2003

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 03 $1,000,000

Abstract: The focus of this RERC is on both access to information (e.g., content) in its various forms,

as well as access to interfaces used within content and by electronic technologies in general. The

research and development program is carefully designed to provide an interwoven set of projects that

together advance accessibility and usability in a fashion that takes into account, and supports, the full

range of access strategies used by manufacturers and people with disabilities. These strategies range

from enhancing the design of mainstream products that can be used by individuals with different ability

sets to enhancing the ability of users to deal with the information and interfaces as they encounter

them. Key to these projects are the development of new models and approaches for characterization of

the functional requirements of current and future interfaces, and a better understanding of the type,

diversity, and similarity of functional limitations across etiologies and disabilities. Research activities

include: model generation and initial pilot studies for the characterization of interface requirements

(current and emerging) and cross-disability user abilities; abstract user interfaces and human interface

sockets; emerging technologies and future research needs; and accessible real-time visual information

presentation in meetings and virtual meetings. Development projects include: tools to facilitate the

incorporation of cross-disability interface features in public information technologies; tools to facilitate

AT-IT interoperability; server-based and “virtual assistive technology;” and support for national and

international standards and guidelines efforts.
3-32 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Accessible Medical

Instrumentation

Marquette University

Department of Biomedical Engineering

P.O. Box 1881

Milwaukee, WI 53201

jack.winters@marquette.edu

www.rerc-ami.org

Principal Investigator: Jack Winters, PhD; Molly Follette Story, PhD, 414/288- 3375 (Winters); 707/

578-6839 (Story)

Public Contact: June Isaacson-Kailes, 310/821-7080; Fax: 414/288-7938

Project Number: H133E020729

Start Date: November 1, 2002

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $901,131; FY 03 $899,614

Abstract: The RERC on Accessible Medical Instrumentation: (1) increases knowledge of, access to,

and utilization of healthcare instrumentation and services by individuals with disabilities; (2) increases

awareness of and access to employment in the healthcare professions by individuals with disabilities;

and (3) serves as a national center of excellence for this priority topic area. Specific research projects

include: (1) needs analysis for people with disabilities as both recipients and providers of healthcare

services, and for manufacturers of healthcare instrumentation; (2) usability analyses to determine what

makes certain medical instrumentation either exemplary or problematic yet essential to healthcare

service delivery; (3) accessibility and universal usability analysis to identify classification and measurement approaches that could be used to explore metrics for accessibility of medical instrumentation; and

(4) policy analyses to explore how medical policies affect healthcare utilization and employment in the

healthcare professions of persons with disabilities. Specific development projects include: (1) development of tools for usability and accessibility analysis; (2) development of modified and new accessible

medical instrumentation; (3) monitoring of, and involvement in development of, emerging, accessible

healthcare technologies; and (4) development of design guidelines for accessible medical instrumentation and model policies for healthcare service delivery.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-33

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Wayfinding Technologies for People with Visual Impairments: Research

and Development of an Integrated Platform

Sendero Group, LLC

1118 Maple Lane

Davis, CA 95616-1723

mikemay@senderogroup.com

www.senderogroup.com

Principal Investigator: Michael May

Public Contact: 530/757-6800; Fax: 530/757-6700

Project Number: H133A011903

Start Date: December 1, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $449,065; FY 02 $449,895; FY 03 $449,444

Abstract: This project develops a hardware and software platform that provides accessible location

and navigation information for people who are blind or who have visual impairments who are traveling

in indoor and outdoor environments. Development activities focus on creating an effective user interface and developing a common hardware and software platform that exploits the Global Positioning

System (GPS) and other current and emerging navigation technologies. Specific activities include

integrating navigation aids that have been developed by Sendero LLC (GPS Talk) and by the University of California-Santa Barbara/CMU group headed by Jack Loomis (the Personal Guidance System,

or PGS). The platform also accesses information from other devices, including Talking-Signs® type

devices, intersection signalization controls, an indoor digital sign system to be developed during this

project at the University of Minnesota, a spatialized tactile stimulator to be developed at UCSB, a dead

reckoning pedestrian navigation system, and cellular phones with GPS capabilities. For navigating in

outdoor environments, a system could aid pedestrians who are blind at complex intersections and

roundabouts, and devices could assess and prevent veer.
3-34 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Disability and Rehabilitation Research Projects

California

Community Research for Assistive Technology

California Foundation for Independent Living Centers (CFILC)

660 J Street, Suite 270

Sacramento, CA 95814

anoakes@cfilc.org

www.atnet.org/CR4AT/Press/Intro.NIDRR.Press.Release.html

Principal Investigator: Tanis Doe, PhD

Public Contact: Amy Noakes, Project Coordinator, 916/325-1690 (V); 916/325-1695 (TTY); Fax:

916/325-1699

Project Number: H133A010702

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 01 $299,910; FY 02 $299,893; FY 03 $229,150

Abstract: This project increases the capacity of the independent living community to work with its

members and stakeholders to collect research data on access and use of AT to improve the lives of

people with disabilities. Using a participatory research approach, the California Foundation for Independent Living Centers (CFILC) is using an ecological model to develop cumulative research data on

the use of and access to AT by people with disabilities. University researchers train participants in

research methods and assist with data collection and analysis. Community advocates conduct focus

groups, surveys, and action research in their respective regions. Advocates also train university students in community-based research related to AT and independent living.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-35

Disability and Rehabilitation Research Projects

Georgia

Information Technology Technical Assistance and Training Center

(ITTATC)

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

ittac@arch.gatech.edu

www.ittatc.org

Principal Investigator: Mimi Kessler

Public Contact: 404/894-0953; Fax: 404/894-9320

Project Number: H133A000405

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $1,500,000; FY 01 $1,500,000; FY 02 $1,500,000; FY 03 $1,500,000

Abstract: This project provides information, training, and technical assistance to support the implementation of Section 508 of the Rehabilitation Act and Section 255 of the Telecommunications Act to

industry, state officials, trainers and consumers. The Center promotes the benefits of universal design to

technology manufacturers, product designers and engineers, technical writers, marketers, and purchasers of IT. It also works closely with federal regulatory agencies including the Federal Communications

Commission, the Access Board, the Department of Justice, and the General Services Administration to

advance understanding and knowledge utilization of approaches to the requirements of Sections 255

and 508 through training and technical assistance activities. The Information Technology Technical

Assistance and Training Center is a collaborative project of the Center for Assistive Technology and

Environmental Access, World Institute on Disability, University of Iowa Law, Health Policy and

Disability Center in Washington DC, Trace Center at the University of Wisconsin Madison, NIDRR’s

Disability and Business Technical Assistance Centers, and ITTATC’s National Advisory Council

among others.
3-36 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Disability and Rehabilitation Research Projects

Iowa

Technology for Independence: A Community-Based Resource Center

(TI:CBRC)

University of Iowa

Law, Health, Policy, and Disability Center

431 Boyd Law Building

Iowa City, IA 52242

peter-blanck@uiowa.edu; james-schmeling@uiowa.edu

www.its.uiowa.edu/law

Principal Investigator: Peter D. Blanck, PhD, JD, 319/335-9043

Public Contact: James Schmeling, JD, 319/335-8458; Fax: 319/335-9098 (Blanck); 319/335-9764

(Schmeling)

Project Number: H133A021801

Start Date: November 1, 2002

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $299,965; FY 03 $299,945

Abstract: The CBRC builds and enhances the capacity of community-based and consumer-directed

disability organizations to design, implement, and disseminate research activities and projects that

promote environmental access and use of technology for independence. The CBRC uses a combination of implementation strategies such as leadership development, training, and technical assistance

activities, web- assisted audioconference training, distance education, and three annual onsite symposia

in Iowa City, Houston, and Washington, D.C. CBRC activities are directed to selected research teams,

research centers, community-based disability organizations, and University research centers. Using

multi- and inter-disciplinary models, the CBRC builds and enhances the capacity of these and other

entities to conduct research that is both scientifically rigorous and relevant to real-world social, policy,

and legal interests. The research team framework pairs researchers from community-based organizations with researchers from university-based research centers to improve existing and future collaborative relationships. The research pairs comprise individuals with diverse backgrounds, in terms of their

disability type and severity, ethnicity, and socioeconomic experiences. The participants form close

working relationships designed to advance knowledge in the areas related to technology for independence and environmental access. The project merges the national experience and expertise of ILRU

regarding independent living and principles of choice and self determination, with the nationally

recognized research expertise of LHPDC in the areas of technology access and use, employment

policy, and civil rights.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-37

Disability and Rehabilitation Research Projects

Kansas

Mental Retardation and Technology Disability and Rehabilitation

Research Project

University of Kansas

Beach Center on Disability

1200 Sunnyside Avenue, Room 3136

Lawrence, KS 66045-7555

wehmeyer@ku.edu

www.beachcenter.org

Principal Investigator: Michael Wehmeyer, PhD

Public Contact: 785/864-0723; Fax: 785/864-3458

Project Number: H133A010602

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $299,871; FY 02 $299,778; FY 03 $299,715

Abstract: This project increases the ability of people with mental retardation and other cognitive

disabilities to use electronic and information technology as well as assistive and universally designed

technologies. It examines current technology design features, gaps that exist in its utilization, what

state-of-the-art technology exists or is emerging that would provide benefits, and what modifications to

existing or new technology would enhance this population’s inclusion in the community and integration into the workplace. The project includes two national consensus conferences, in conjunction with

the national conferences held annually or semi- annually by American Association on Mental Retardation (AAMR) and The Arc of the United States, to address these issues. Additional activities include

reviewing and synthesizing the extant literature, canvassing existing disability-related technology

advocates and associations (including Tech Act Centers and related entities), and conducting focused

interviews of key stakeholders. The project also includes a Special Interest Group on Technology and

Mental Retardation through the AAMR, which allows stakeholders in the field the opportunity to

participate in all project activities. A national expert advisory panel consisting of representatives from

national disability organizations, manufacturers, people with mental retardation, experts in the field,

and parent/family representatives are involved in all consensus-building activities and advise the

project through its duration. The project is a collaboration of the Beach Center on Disability at the

University of Kansas, The Arc, the AAMR, AbleLink Technologies, the Coleman Institute on Cognitive Disabilities, the Self-Advocate Coalition of Kansas, and the Joseph P. Kennedy Jr. Foundation.
3-38 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Disability and Rehabilitation Research Projects

Missouri

Assistive Technology in the Community

Washington University

School of Medicine

Occupational Therapy

4444 Forest Park Avenue

St. Louis, MO 63108

walkerc@msnotes.wustl.edu

enablemob.wustl.edu/Research/NIDRR/at_community.htm

Principal Investigator: David B. Gray, PhD, 314/286-1658

Public Contact: Carla Walker, 314/725-6676, ext.101; Fax: 314/721-9964

Project Number: H133A010701

Start Date: January 1, 2002

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $300,000; FY 02 $300,000; FY 03 $300,000

Abstract: This project promotes AT as a means of increasing participation in major life activities by

people with disabilities. Project activities include: (1) assessing the use, disuse, injury, and effects that

AT has on the participation of people with disabilities in major life activities, to determine what technologies are of the most benefit in community settings; (2) implementing a community-based AT

program in collaboration with Paraquad, a nationally recognized Center for Independent Living, to

improve the satisfaction of participants in their self-chosen life activities; (3) educating consumers,

independent living staff, educators, health care professionals, AT industry leaders, and public policymakers about the influence AT has on major life activities.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-39

Disability and Rehabilitation Research Projects

North Carolina

Advancing Assistive Technology Outcomes

Duke University

Division of Speech Pathology and Audiology

DUMC-3888

Durham, NC 27710

frank.deruyter@duke.edu

www.AToutcomes.com

Principal Investigator: Frank DeRuyter, PhD

Public Contact: Mitzi May, 919/681-9983 (V); 919/684-6626 (TTY); Fax: 919/681-9984

Project Number: H133A010401

Start Date: November 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $449,787; FY 02 $449,932; FY 03 $449,967

Abstract: This program advances the field of AT outcomes measurement. Research activities include:

(1) performing a critical analysis of existing approaches to measurement and further developing instruments that are promising; (2) identifying unmet needs and assessing barriers to AT outcomes measurement; and (3) undertaking a prospective longitudinal study of factors associated with assistive device

adoption, use, and discontinuance. Development activities include: (1) developing and evaluating

independent electronic data collection or computer-assisted systems for the capture, analysis, and

interpretation of AT outcomes information; (2) developing and evaluating improved methods and

systems for communication of outcomes information among significant stakeholders; (3) automatic log

file performance data-capturing for AT outcomes assessment; and (4) development of new or improved

AT outcomes tools.
3-40 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Disability and Rehabilitation Research Projects

Ohio

Assistive Technology and Cognitive Disabilities

University of Akron

School of Speech-Language Pathology and Audiology

The Polsky Building 188K

Akron, OH 44325-3001

Principal Investigator: Roberta DePompei, 330/972-6114

Public Contact: Fax: 330/972-3001

Project Number: H133A030810

Start Date: November 1, 2003

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $375,132

Abstract: This project assesses the use of several types of information technologies by children and

adults with cognitive disabilities, specifically individuals with TBI and mental retardation. Outcomes

include: (1) a catalog of existing portable devices for memory and organization (2) a list of features that

enhance or inhibit use of these general purpose and special-use technologies, (3) results of needs

surveys regarding use of these technologies, (4) white papers describing project findings, (5) tip cards

to assist families in purchasing devices, (6) stronger partnerships between the consumer and research

and development communities, and (7) recommendations for memory and organization device modifications and features for individuals with brain injury and mental retardation. The Brain Injury Association, Inc. leads and administers this collaborative partnership, which includes the Traumatic Brain

Injury Model Systems Projects at Moss Rehabilitation Research Institute and Spaulding Rehabilitation

Hospital, the Institute on Disabilities/Center for Excellence on Developmental Disabilities at Temple

University, and the University of Akron.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-41

Disability and Rehabilitation Research Projects

Oregon

Think and Link: Email for Individuals with Cognitive Disabilities

Western Oregon University

Teaching Research Division

99 West Tenth Avenue, Suite 370

Eugene, OR 97401

mckay@oregon.uoregon.edu

www.think-and-link.org

Principal Investigator: McKay Moore Sohlberg, PhD

Public Contact: 541/346-2586; Fax: 541/346-0599

Project Number: H133A010610

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $300,000; FY 02 $300,000; FY 03 $300,000

Abstract: This project improves the access and use of electronic mail by individuals with cognitive

disabilities resulting from brain injury. The Internet’s email component has created an unparalleled

communication network linking people for commercial and social purposes. It holds tremendous

potential for lessening social isolation, one of the most pervasive and devastating consequences of

brain injury. However, virtually nothing is known about what modifications are required to provide

successful access to this technology to people with cognitive disabilities that result from brain injury. In

addition, the diverse cognitive impairments confronting people with brain injury render an enormous

challenge to the development of assistive devices that could improve accessibility to email. Activities

of this project include: (1) identifying the wide range of issues critical for long-term, effective use of

email by people with cognitive disabilities; (2) developing a diagnostic protocol, a cyber- evaluation of

the potential of a person with cognitive disabilities to use electronic communication; (3) developing a

software toolkit that allows caregivers, support persons, and professionals to fit an individual user with

a customized email system; (4) creating a virtual clinic that supports widespread dissemination and use

of these materials by cognitive rehabilitation professionals. An open-source software site on the web

allows other worldwide researchers to use the new tools and contribute tools of their own.
3-42 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Disability and Rehabilitation Research Projects

Pennsylvania

Information Technology for Independence: Community-Based

Research

University of Pittsburgh

6026 Forbes Tower

Pittsburgh, PA 15260

parmanto@pitt.edu

www.pitt.edu/~curbcut

Principal Investigator: Bambang Parmanto, PhD

Public Contact: 412/383-6649; Fax: 412/383-6655

Project Number: H133A021916

Start Date: January 1, 2003

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $299,945; FY 03 $299,534

Abstract: This project explores methods and technologies to mitigate barriers to computer and Internet

use encountered by people with visual impairments. These barriers include limited computer ownership and Internet availability, difficulty in obtaining accommodations for functional limitations (including cost issues), psychological barriers arising from inadequate coaching or mentoring, and the limited

accessibility of most Web sites to individuals with visual impairments. Accessibility can be promoted

through computer ownership, Internet availability, assistive technologies, and knowledgeably-staffed

public computer stations, such as at independent living centers. Evaluation of these barriers and identified accommodation strategies is the first research task of this project. Preceded by focus groups and a

widely-disseminated survey, the match of correct assistive device(s) to the individual and appropriate

coaching and mentoring will be tested at community-based computer laboratories. The second research

task is to develop and evaluate a new approach to Internet accessibility—a Gateway server. This

Gateway delivers the contents of any Web site, whatever its level of accessibility, by transforming

these contents into the most accessible format for any user, as Google does for personal digital assistant

(PDA) users. The Gateway will promote Internet accessibility without requiring that commercial Web

sites follow promulgated guidelines or standards for users with disabilities, something that Web developers often seem to resist. Additionally, this project develops innovative metrics that promote a scientific approach to the analysis of Web accessibility and is conducting large-scale studies of webpage

accessibility to measure progress in accessibility over time and to identify the impact(s) of new technologies.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-43

Disability and Rehabilitation Research Projects

Washington

ACCESS: Assisted Cognition in Community, Employment, and

Support Settings

University of Washington

Center on Human Development and Disability

Box 357920

Seattle, WA 98195

pabrown@u.washington.edu

cognitivetech.washington.edu (not yet active)

Principal Investigator: Kurt Johnson, PhD, 206/543-3677

Public Contact: Pat Brown, Ed.D, 206/616-3714; Fax: 206/543-4779

Project Number: H133A031739

Start Date: October 1, 2003

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $297,127

Abstract: Project ACCESS investigates the use of assisted cognition as a tool for caregivers in supporting individuals with disabilities in living, working, and fully participating in community activities.

The use of assisted cognition devices has the potential to increase an individual’s independence and

decrease their reliance on the family/friend/caregiver network and community support staff. Devices in

development include the activity compass and the ADL Prompter. The activity compass meshes

several technologies (Palm Pilot, GPS receiver, and wireless modem). Over time, the device learns a

user’s typical daily routines, monitors for variations, and then decides whether a prompt is necessary

when a routine is unexpectedly changed. The ADL prompter monitors data collected by sensors

embedded in a living or work environment. Using artificial intelligence software, the data from these

sensors are interpreted and decisions made based upon the needs of the user. Although initially designed for people with Alzheimer’s, these devices have applications as support tools for caregivers and

people with disabilities since they potentially support “distributed caregiving” wherein the caregiver or

family member monitors, prompts and/or supports from a distance.
3-44 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Disability and Rehabilitation Research Projects

Wisconsin

ATOMS Project: Assistive Technology Outcomes Measurement System

University of Wisconsin/Milwaukee

Center for Rehabilitation Sciences and Technology

College of Health Sciences

P.O. Box 413

Milwaukee, WI 53201-0413

atoms@uwm.edu

www.atoms.uwm.edu

Principal Investigator: Roger O. Smith, PhD

Public Contact: 414/229-6803 (V); 414/229-5628 (TTY); Fax: 414/229-5100

Project Number: H133A010403

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $450,000; FY 02 $450,000; FY 03 $450,000

Abstract: The ATOMS Project (Assistive Technology Outcomes Measurement System) targets the

definition and pre-development phases of a next-generation AT outcomes measurement system. A

comprehensive needs assessment, prototype instrument development, and consensus building activities

frame an integrated set of research and development activities to address urgent needs to identify

components of a future AT outcomes measurement system. In addition, these activities generate information about the relationships of AT outcomes factors that produce a better understanding of AT use

and abandonment.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-45

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

California

The Learning and Transfer of Prosthetic Control

San Francisco State University

1600 Holloway Avenue

San Francisco, CA 94132-1700

saw@sfsu.edu

www.mblab.sfsu.edu

Principal Investigator: Stephen Wallace, PhD

Public Contact: 415/338-6984; Fax: 415/338-7566

Project Number: H133G000024

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $149,011; FY 01 $149,011; FY 02 $148, 900; FY 03 (No-cost extension

through 12/31/2003)

Abstract: By studying the use of a simulated body-powered upper-extremity artificial limb, this

project hopes to reduce the learning time required to use a prosthetic limb effectively and to decrease

the unusually high rejection rates for people with amputations fitted with a new prosthesis. Project

objectives include: (1) describing how people learn to control and coordinate body-powered upperextremity prostheses, by assessing tasks related to daily living, in regard to changes in movement

strategies, the rate at which learning occurs, and the degree to which changes in performance are

maintained over a retention interval; (2) understanding bilateral transfer of movement components used

to reach, grasp, transport, and apply appropriate pressure to objects; and (3) determining whether the

type of prosthesis (i.e., voluntary opening and voluntary closing) influences the rate at which an

individual achieves functional control of activities related to prosthetic manipulation. After a thorough

understanding of how people learn prosthetic control is developed, the simulator could be successfully

employed after amputation, up to prosthesis fitting, to familiarize patients with prosthesis use and

control skills. Findings could also provide therapists with new strategies for training people with

amputations to regain functional independence with a newly acquired artificial limb. Finally, the

experiments contribute to the development of a theoretical knowledge base for clinical practice.
3-46 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Field-Initiated Projects (FIPs)

California

Sound Localization with Multichannel Compression Hearing Aids

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

helen@ski.org

www.ski.org

Principal Investigator: Helen J. Simon, PhD

Public Contact: 415/345-2071; Fax: 415/345-8455

Project Number: H133G030118

Start Date: September 1, 2003

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $150,000

Abstract: The primary objective of this research is to evaluate and compare wide dynamic range

multichannel compression (WDRMCC) and linear hearing aids on localization (and speech perception

through the VA component) since there have been no studies of auditory localization using

WDRMCC. The research uses innovative strategies and an extension of previous work, by taking

WDRMCC outside of the laboratory to evaluate it in the complexities of the normal auditory environment and looking at effects of hearing aid experience on the ability to localize sounds. In addition to

examining the general efficacy of a new wearable WDRMCC hearing aid in localization tasks, the

research objectives include detailed study of the specific changes that occur in sound localization with

WDRMCC and linear amplification as a function of time and the differences between the two platforms.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-47

Field-Initiated Projects (FIPs)

California

”Cross Watch”: Development of an Intersection Information System for

Blind Travelers Based on Computer Vision

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

www.ski.org/Rehab

Principal Investigator: John A. Brabyn, PhD, 415/345-2110

Public Contact: Deborah Gilden, PhD, 415/345-2000; Fax: 415/345-8455

Project Number: H133G030080

Start Date: September 15, 2003

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $150,000

Abstract: The goal of this project is to develop and evaluate a system, based on computer vision

technology, to give a blind traveler more information about intersections than is obtainable through

conventional orientation and mobility techniques. Urban intersections (the most dangerous parts of a

blind person’s travel, and the places where most accidents happen) are becoming increasingly complex, making safe crossing ever more difficult. The project develops a system named “Cross Watch” to

help the blind person find the crosswalk, learn about the shape and nature of the intersection, find the

pedestrian signal button, determine when the “walk” light is on, and alert him/her to any veering out of

the crosswalk while crossing. The primary input to the system is images from a small camera carried

like a pendant around the user’s neck, analyzed by software to extract the desired information. The

specific goals are to: (1) gather a database of real images taken by blind persons at a variety of different

kinds of intersections; (2) develop algorithms to process the images and extract the desired information;

(3) incorporate the camera and algorithms in a portable prototype; and (4) conduct user testing to

establish design parameters and human interface optimization. The software is designed to be capable

of integration as a module for the “SignFinder” system already in development for finding printed

signs in the camera images and reading them aloud to the user. The combined system provides a

quantum leap forward in independent travel for blind persons.
3-48 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Field-Initiated Projects (FIPs)

Colorado

Development of an Assistive Technology Outcomes Measurement

System Utilizing the International Classification of Functioning

(ICIDH-2/ICF)

University of Colorado Health Sciences Center

Assistive Technology Partners

1245 East Colfax Avenue, Suite 200

Denver, CO 80218

cathy.bodine@uchsc.edu

www.uchsc.edu/atp

Principal Investigator: Cathy Bodine

Public Contact: 303/315-1281; Fax: 303/837-1208

Project Number: H133G030187

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $149,939

Abstract: This project furthers the development of a secure, Health Insurance Privacy and Accountability Act of 1996 (HIPAA) compliant, multi-site, web-based assistive technology (AT) outcomes

system designed to capture data that enables the measurement of the impact of AT devices and services

for children and adults with disabilities. The project results in the design and development of a working

prototype complete with instructional support for users. The project is designed for easy addition of

data fields to support the ever-evolving schema for outcomes assessment in AT. The use of the International Classification of Functioning, Disability and Health (ICIDH-2/ICF) as the framework for development builds on initial pilot work already completed by faculty of Assistive Technology Partners,

University of Colorado Health Sciences Center, and collaboration with two NIDRR funded national

projects focused on AT outcomes development (ATOMS/CATOR). Information gained leads to

maximizing the full inclusion and integration into society, employment, independent living, family

support, and economic and social self-sufficiency of individuals with disabilities, especially individuals

with the most severe disabilities; and will lead to improved information and research on the effectiveness of AT devices and evidence-based practices.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-49

Field-Initiated Projects (FIPs)

Delaware

Automatic Generation of Optimal Tactile Graphics

University of Delaware

Electrical and Computer Engineering Department

312 Evans Hall

Newark, DE 19716

barner@ee.udel.edu

www.ece.udel.edu/~barner

Principal Investigator: Kenneth Barner, PhD, 302/831-6937

Public Contact: Fax: 302/831-4316

Project Number: H133G020103

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $149,700; FY 03 $149,770

Abstract: This project develops and implements image manipulation algorithms optimal for generating

binary tactile graphics. Specifically, the following methods are optimized for the automatic translation

of images to binary representations appropriate for tactile display: (1) Edge Detection—boundaries in

images often represent important context queues; extracting edges allows these queues to be tactilely

represented. This can be accomplished in a multi-resolution approach allowing the user to control the

detail level presented. (2) Region Segmentation—graphic content can often be separated into distinct

regions, or objects. While edge detection operations frequently yield broken boundaries, resulting in

confusing tactile representations; segmentation can produce closed boundaries optimized to retain

object integrity that can be combined with texturing procedures. (3) Tactile Texturing—binary texturing can be introduced to yield tactile information on the image gray level or color; such texturing, or

halftoning, methods can be adopted from the literature on visual halftones and optimized specifically

for tactile representations. The efficacy of each method is tested utilizing human subjects and the

results are utilized in the optimization of each algorithm. Software conversion routines and printing

algorithms are also developed that allow the methods to be used with existing software packages, such

as word processors and web browsers, and to enable direct printing on existing hardware, such as the

TIGER printer and microcapsule paper.
3-50 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Field-Initiated Projects (FIPs)

Delaware

Specifying the Facilitative Effects of Animation on the Understanding

of Action Word Representatives

Center for Applied Science and Engineering

Alfred I. duPont Hospital for Children

University of Delaware

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899

mineo@asel.udel.edu

Principal Investigator: Beth A. Mineo Mollica, PhD, 302/651-6836

Public Contact: Sonja Simowitz, Project Coordinator, 302/651-6796 (V); 302/651- 6794 (TTY); Fax:

302/651-6793

Project Number: H133G990115

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $149,964; FY 00 $149,920; FY 01 $149,979; FY 02 (No-cost extension

through 5/31/2003) FY 03 (No-cost extension through 5/31/2004)

Abstract: Using a customized computer-based assessment protocol, this project examines the differential ability of several types of graphics (static and animated) to convey the meaning of action word

representations. Picture-based language representations afford access to augmentative and alternative

communication (AAC) options for many individuals who otherwise would be unable to benefit from

communication enhancement approaches. Some new products in the AAC marketplace offer consumers the feature of animation. While it has been presumed that animation would make the meaning of

verb representations more salient, this position has not been proven, and it may in fact be the case that

the complexity of the linguistic task is affected by the complexity of the representation. Six varied

representational types are investigated with children with typical development, children with disabilities, adults with developmental disabilities, and adults with acquired cognitive disabilities. Further, the

investigators attempt to determine which characteristics of action representation positively affect

performance.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-51

Field-Initiated Projects (FIPs)

Delaware

An Upper Limb Orthosis for People with Muscular Dystrophy

Alfred I. duPont Institute of the Nemours Foundation

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899

trahman@nemours.org

Principal Investigator: Tariq Rahman, PhD

Public Contact: 302/651-6831; Fax: 302/651-6895

Project Number: H133G000117

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $147,970; FY 01 $149,497; FY 02 $149,911; FY 03 (No-cost extension

through 3/31/2004)

Abstract: This project develops an orthosis that provides a full range of movement for people with

upper-limb weakness while still supporting their arms against gravity. For a person whose sensory

system is intact, the orthosis uses their sensory system to augment their residual motor ability. It provides proprioception, an essential part of an effective interface between the human and the orthosis.

Five prototypes are developed and clinical trials with twenty consumers are performed. Upon completion of the evaluation and analysis phases, the technology is transferred to a private company. The

expected result is a relatively inexpensive, functional, and well- concealed assistive device that provides the opportunity for educational, vocational, and social interaction for thousands of individuals

with upper-extremity motor disabilities.
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Field-Initiated Projects (FIPs)

Florida

The Development of a Tool to Enhance Communications Between Blind

and Sighted Mathematicians, Students, and Teachers: A Global

Translation Appliance

University of South Florida

Lakeland Campus

3433 Winter Lake Road

Lakeland, FL 33803

arthur@lklnd.usf.edu

Principal Investigator: Arthur I. Karshmer, PhD

Public Contact: 863/667-7067; Fax: 863/667-7096

Project Number: H133G010046

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $149,540; FY 02 $134,111; FY 03 $139,474

Abstract: This project builds a translator for several mark-up notations used in scientific, mathematic,

engineering, and technological fields. The primary difficulty encountered by students with visual

impairments in pursuing studies in science, mathematics, engineering or technology is how to read and

write mathematics. To overcome the limited expressiveness of six-dot braille characters, a plethora of

notations for marking-up mathematics have been devised, including Nemeth Math code, Marburg

code, the French standard, the Stuttgart standard, and others. These notations are braille-based and

designed specifically for people with visual impairments, and are not known to sighted individuals; as

a result, written technical communication between individuals who are sighted and individuals who

have visual impairments is quite difficult. Further, communication between individuals who have

visual impairments is also difficult when different notations are used. The new tool allows free conversion among the Marburg code, Nemeth code, Latex and MathML by developing a common intermediate format (CIF) for representing mathematics, and uses logic programming and denotational semantics

to translate between supported notations and the CIF. The CIF is also used to develop a mark-up

notation independent auditory browser for the understanding of complex mathematical expressions by

users with visual impairments. The auditory browser conveys the structure of a mathematical expression as well as its content via speech output. The user also has the ability to navigate the expression

interactively and focus on its subparts in order to understand the expression better.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-53

Field-Initiated Projects (FIPs)

Illinois

Tools to Help Web Developers Create more Universally Accessible Web

Resources to People with Disabilities

University of Illinois

Rehabilitation Education Center

1207 South Oak Street

Champaign, IL 61820

office@rehab.uiuc.edu

cita.rehab.uiuc.edu/software/office

Principal Investigator: Jon Gunderson, PhD

Public Contact: 217/244-5870; Fax: 217/333-0248

Project Number: H133G030079

Start Date: August 15, 2003

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 03 $149,959

Abstract: The most popular tools used by instructors are non-traditional web authoring tools like

Microsoft Office Applications including Power Point, Excel and Word (a recent survey of instructors

found 99% use Microsoft Office to create at least part of their web based instructional materials). This

project creates web authoring tools that integrate the creation of accessible markup into the default

authoring process of publishing Microsoft Office documents to the web. The accessibility is integrated

into the authoring process so the author does not need any special knowledge of HTML coding or

accessibility techniques, nor to perform extra time consuming steps to add or edit accessible markup

after a document is created. The integrated authoring tool does not require awkward post publishing

accessibility evaluation and repair steps to determine what accessibility markup is needed for improved

accessibility. The HTML generated by the Office plug-ins not only improves accessibility to people

with disabilities, but the content is more accessible to everyone by supporting World Wide Web Consortium (W3C) web standards and the interoperability the W3C recommendations provide. The

interoperability of W3C recommendations makes information available to any web browser and not

just Internet Explorer (currently the default web publishing features of Office support web coding that

can only be viewed in Internet Explorer).
3-54 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Field-Initiated Projects (FIPs)

Illinois

Cost Effectiveness of a Computerized Oral Reading Treatment for

Aphasia

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611-4496

lcherney@rehabchicago.org

Principal Investigator: Leora Cherney, PhD

Public Contact: 312/238-1117; Fax: 312/238-2635

Project Number: H133G010098

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 01 $149,470; FY 02 $149,892; FY 03 $149,732

Abstract: This study evaluates the efficacy and cost-effectiveness of an innovative, computerized

treatment program for individuals with aphasia, a communication disorder and chronic condition.

Aphasia requires long-term treatment to ensure that individuals can participate in a full range of vocational, recreational, and social activities. However, recent health care changes have seriously curtailed

the amount of treatment received by patients with aphasia. In this environment effective treatments

should be developed that can be easily administered and delivered at minimum cost. Oral Reading for

Language in Aphasia (ORLA) was originally developed to improve reading comprehension in individuals with aphasia. Preliminary studies indicate that ORLA is effective in improving reading comprehension in patients with all types of aphasia. In addition to improvements in reading comprehension,

cross-modal generalization occurs in some patients, with improvements in auditory comprehension and

oral expression evident. The present study compares changes in communication performance for a

group of aphasic individuals receiving ORLA from a speech-language pathologist and a group receiving a computerized version of the ORLA treatment.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-55

Field-Initiated Projects (FIPs)

Illinois

Selective Dynamic Strength Training to Enhance Upper Limb

Coordination Following Stroke

Northwestern University

Department of Physical Therapy and Human Movement Sciences

645 North Michigan Avenue, Suite 1100

Chicago, IL 60611

j-dewald@northwestern.edu

Principal Investigator: Julius Dewald, PT, PhD

Public Contact: 312/908-6788

Project Number: H133G030143

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $149,998

Abstract: This study investigates the use of a novel selective dynamic strengthening protocol, which

incorporates a two-joint robotic device to overcome gravity induced abnormal movement synergies

following hemiparetic stroke. The specific objectives are the evaluation and demonstration of the

usefulness and effectiveness of this selective dynamic robot-supported training regime for enhancement

of quality of life of stroke survivors. The effects of the dynamic training regime on functional arm

movements are being investigated in two groups of 20 subjects with chronic hemiparetic stroke. The

control group follows an 8-week conventional upper extremity strengthening protocol consisting of

shoulder abduction/flexion and elbow extension exercises. This conventional protocol represents an

adapted exercise program is available for people with chronic stroke (4.5 million) whom no longer

receive formal physical therapy due to a plateau in functional restoration. The experimental group

follows a novel robot- supported training regime, which also strengthens subjects with chronic stroke

but emphasizes performance of rapid reaching movements while increasing active support of their arm.

This enables the subject to progressively deviate from their abnormal torque synergies. The evaluation

and training paradigm provides quantitative outcome measures, which can be used to reliably track a

patient’s progress using technology that is easy to implement with no risk of injury. The long-term

goals of this study are the technological development and implementation of a simple, user-friendly

robot-supported therapeutic intervention accessible to consumers in both in- and out-patient clinics.
3-56 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Field-Initiated Projects (FIPs)

Iowa

Computer Training Materials for Deaf-Blind Individuals

State of Iowa Department for the Blind

524 Fourth Street

Des Moines, IA 50309

Farver.kent@blind.state.ia.us

Principal Investigator: Curtis Chong

Public Contact: 515/281-1256; Fax: 515/242-5781

Project Number: H133G020196

Start Date: August 1, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $148,870; FY 03 $147,870

Abstract: This project creates a comprehensive array of computer training materials tailored to the

needs of people who are deaf-blind. Objectives include: (1) developing 45 computer tutorials written

for people who are deaf-blind; (2) conducting three seminars to provide information and training to VR

professionals and others regarding computer access by people who are deaf-blind; and (3) disseminating training materials to agencies serving people who are deaf-blind. The tutorials use an innovative

approach that trains people who are deaf-blind or blind to use a computer with assistive technology.

This includes a keyboard-only approach to the graphical Windows interface and information and stepby-step exercises that specifically address the screen reader-braille display combination the individual

is using to operate mainstream or communications programs (each screen reader and braille display

uses unique keystrokes, configurations, and feedback). This project provides people who are deafblind with computer skills they need to obtain and retain good jobs and to pursue computer-based

communications and recreational activities. It also provides VR professionals, consumer organizations,

and other private and public agencies with professionally developed tutorials they can give to clients

for independent work or use in one-on-one or group computer training.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-57

Field-Initiated Projects (FIPs)

Kansas

Reusing AT/DME Acquired Through Public Funds: Developing a CostNeutral, Consumer- Driven Program

University of Kansas Center for Research, Inc.

Schiefelbusch Institute for Life Span Studies

1000 Sunnyside Avenue

1052 Dole

Lawrence, KS 66045-7555

ssack@ku.edu

www.atk.ku.edu

Principal Investigator: Sara H. Sack, PhD, 620/421-8367

Public Contact: Pamela Cress, EdD, 620/421-6550, ext. 1888; Fax: 620/421-0954

Project Number: H133G010102

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $149,740; FY 02 $149,991; FY 03 $149,998

Abstract: This project builds a consumer responsive, cost-neutral program to reuse and redistribute

durable medical equipment. The project addresses state and national needs in three critical ways. First,

it increases access to durable medical equipment and AT (including previously used technology) that

promotes the likelihood that people are able to reach personal goals related to independent living,

employment, and improved social lives. Second, using previously owned equipment in good condition

spreads the benefit of limited state and federal resources across more people. And finally, the reuse

program reduces the consumption of natural resources such as aluminum, glass, plastics, and fuel. The

reuse program is composed of four interrelated components, including a data tracking system, a consumer follow-up system, a reuse system through a network of statewide equipment providers, and

marketing. This project is a collaboration of the Technology Act grantee for Kansas, the Assistive

Technology for Kansans project (ATK), Kansas Medical Policy (Medicaid), durable medical equipment providers, and consumers.
3-58 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Field-Initiated Projects (FIPs)

Massachusetts

Access to Digital Television

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

Mary_Watkins@wgbh.org

ncam.wgbh.org

Principal Investigator: Gerry Field

Public Contact: Mary Watkins, 617/300-3700; Fax: 617/300-1035

Project Number: H133G010170

Start Date: August 1, 2001

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000

Abstract: In the transition of the nation’s television system from analog to digital television (DTV)

broadcasts, this “DTV Access” project represents the needs of people with sensory disabilities. Serious

technical challenges may prevent Americans from participating in the pending transformation of

communications and program delivery technologies if they are deaf, hard-of-hearing, blind or if they

have low vision. This project leads the effort to ensure that the next-generation of DTV equipment

does not replicate current problems or create new ones in the need to comply with the Federal Communications Commission-mandated digital transition. Project staff are working with broadcasters and

standards-setting bodies to develop standards and open protocols, and to support implementation of

captions and descriptions in DTV broadcasts. The DTV Access project addresses additional challenges that arise when broadcast programming is delivered via cable, satellite, Internet or wireless

technologies. It also works to include people with sensory disabilities in the audience for the wealth of

new program enhancements, interactive capabilities, and public and private data services that DTV

promises to deliver. The project unites industry, standards-setting bodies, regulatory agencies, and

consumers who have disabilities in a national, high-profile collaboration to provide equal access for

people with disabilities to DTV programming, enhancements, interactive components, and data services.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-59

Field-Initiated Projects (FIPs)

Massachusetts

Beyond the Text: Access to Images, Audio, and Multimedia in eBooks

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

access@wgbh.org

ncam.wgbh.org/ebook

Principal Investigator: Geoff Freed

Public Contact: 617/300-3400

Project Number: H133G020091

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Abstract: This project researches, develops, and disseminates recommended practices and demonstration models that enable access to and understanding of images, audio, and multimedia presented within

electronic book (eBook) formats for users who are blind or deaf. The eBook format offers online and

portable access to all manner of traditional print products, including fiction, nonfiction, textbooks,

professional journals, and other content, via personal computer, laptop, library systems, dedicated

devices, and personal digital assistants (PDAs). Educators, trainers, and publishers are beginning to

explore the learning potential of interactive web-based textbooks that include multimedia (audio and

video) and study tools such as highlighting, note-taking, bookmarking, and direct Internet connections

to references and other online learning resources. All of these features in the eBook format hold great

promise to enhance and improve access to information for users with disabilities. Accessible eBooks

could offer learners of all ages who are blind or deaf equal and ready access to trade, text, or scholarly

books, training materials, online research libraries, and all manner of electronically published resources—a major leap forward in leveling the playing field for people with disabilities at home, at

work, and at school. In order to accomplish this, eBook standards and systems must be designed to

facilitate accessible navigation as well as caption and audio description displays, and eBook materials

must be properly formatted for screen readers and/or refreshable braille displays. eBook content must

include ancillary audio and text information to enable navigation, and to make images, audio, and

multimedia accessible.
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Field-Initiated Projects (FIPs)

Massachusetts

Access to Digital Cinema Systems

WGBH Educational Foundation

Center for Accessible Media

125 Western Avenue

Boston, MA 02134

Principal Investigator: Bradley C. Botkin, 617/300-3902

Public Contact: Mary Watkins, 617/300-3700; Fax: 617/300-1020

Project Number: H133G030104

Start Date: September 1, 2003

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $150,000

Abstract: This project builds on NCAM’s experience and successes in developing and proliferating

“MoPix” technologies to make digital cinema accessible to people with sensory disabilities. MoPix

systems enable the 34 million Americans with hearing or vision loss to enjoy first-run films with their

friends and families. As in all NCAM standards initiatives, open specifications are proposed that

technology developers can use to enable myriad display options, including, but not limited to, MoPix

systems. Project goals are to: (1) Work with standards organizations to ensure inclusion of captions and

audio narration in industry specifications for packaging, identification, transport, retrieval and display

of digital cinema content; (2) develop solutions and prototypes to support delivery and display of

caption and description files, both in current first-generation and future d-cinema systems; and (3)

promote review of project solutions and proposed standards through dissemination and high-profile

demonstrations, and support implementation by digital cinema systems vendors.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-61

Field-Initiated Projects (FIPs)

Massachusetts

Word for Word: Developing an Enhanced Tool for Individuals with

Disabilities

Education Development Center, Inc.

Center for Family, School, and Community

55 Chapel Street

Newton, MA 02458-1060

bfollansbee@edc.org

www.edc.org/spk2wrt

Principal Investigator: Robert Follansbee, EdD, 617/969-7100

Public Contact: Fax: 617/969-3440

Project Number: H133G000204

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $149,998; FY 01 $149,996; FY 02 $150,000; FY 03 (No-cost extension

through 8/31/2004)

Abstract: This project creates, documents, and tests new speech recognition technology. Tasks include: (1) designing an innovative software product, Word for Word, that addresses the writing needs

of people with a wide range of disabilities by integrating two powerful text entry modes, speech

recognition and word prediction, in an interface based on principles of universal design; (2) working in

collaboration with Don Johnson, Inc., a leading producer of special needs software, on the manufacture and marketing of this product, based on the prototype; (3) working in collaboration with a producer of speech recognition software (i.e., Dragon Systems or IBM Corporation) on the design and

implementation of the proposed product based on the prototype; (4) developing materials to support the

use and dissemination of the product; and (5) testing the educational outcomes associated with the use

of the product.
3-62 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Field-Initiated Projects (FIPs)

Minnesota

Cued-Response to Stimulate Saccade-Step Planning and Mobility in

Progressive Supranuclear Palsy

University of Minnesota

Department of Physical Medicine and Rehabilitation

MMC 388, 420 Delaware Street SE

Minneapolis, MN 55455

difab001@umn.edu

Principal Investigator: Richard P. Di Fabio, PhD

Public Contact: 612/626-4973; Fax: 651/653-0909

Project Number: H133G030159

Start Date: September 1, 2003

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $150,000

Abstract: Vertical gaze palsy and recurrent falls are cardinal features of progressive supranuclear palsy

(PSP). These symptoms interfere with safe ambulation and functional mobility. The deficit in gaze

control has a known pathoanatomical origin, but may also involve cognitive dysfunction manifest by a

loss of executive cognitive abilities and visual attention. The purposes of this project are to: (1) determine whether a cued-response intervention is effective in promoting gaze saccade function during a

step climbing task, (2) determine if improved gaze control leads to a reduction of falls and improved

gait mobility, and (3) examine the neurocognitive mechanisms underlying any such improvements.

Preliminary research suggests that vertical gaze palsy can be improved by cueing patients with PSP to

initiate a new stepping pattern while the subject is under motion toward the object. The cue is presented in a stimulus-response compatibility paradigm, which requires the use of executive cognitive

function (planning and problem-solving) to select the appropriate limb for stepping. Two groups of

subjects with PSP will be randomly assigned to receive limb-cue plus eye movement training, or

walking practice with no training in a cross- over design. A follow-up will evaluate retention and

transfer of learning. Outcomes will be assessed using functional tests of mobility and a kinematic

analysis synchronized with infrared oculography.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-63

Field-Initiated Projects (FIPs)

New Jersey

The Use of Virtual Reality Technology for Assessment of Driving Skills

Following Acquired Brain Injury

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

mschultheis@kmrrec.org

www.kmrrec.org/KM/npsych/np_lab.html

Principal Investigator: Maria T. Schultheis, PhD

Public Contact: 973/324-3528; Fax: 973/243-6984

Project Number: H133G000073

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $116,732; FY 01 $144,010; FY 02 $145,781; FY 03 (No-cost extension

through 12/31/2003)

Abstract: This project develops a virtual reality driving system (VRDS) for the assessment of driving

ability in persons with acquired brain injury (ABI), specifically TBI and stroke, and examines the

device’s efficacy and validity. The primary objectives are: (1) to evaluate the concurrent validity of a

virtual reality driving protocol by comparing it to a traditional rehabilitation-hospital-based driving

evaluation; (2) to examine the effects of the addition of complex and challenging driving factors,

including nighttime and traffic congestion, on driving performance within a virtual reality environment;

and (3) to elucidate the effects of demographic and medical factors that may impede or facilitate

driving performance within a virtual reality environment. To achieve the first and third objectives,

approximately 80 participants with ABI are administered both the traditional hospital-based driving

evaluation and the VRDS. To address the second objective and allow comparison and interpretation of

VRDS performance, an additional group of 20 age-and-education- matched, healthy control subjects

are administered the VRDS.
3-64 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Field-Initiated Projects (FIPs)

New York

Advanced Tissue Vascular and Biomechanical Studies for Improved

Prosthetic Socket Design

Narrows Institute for Biomedical Research

VA NYHHS

Rehabilitation Engineering Research (151)

423 East 23rd Street

New York, NY 10010

vlh3@nyu.edu

Principal Investigator: Vern L. Houston, PhD

Public Contact: 212/951-3339; Fax: 212/951-3342

Project Number: H133G030069

Start Date: November 1, 2003

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $149,993

Abstract: The objectives of this project are: (1) to establish the prevalence of prosthesis induced

macro-circulatory occlusion; and (2) to determine if the degree of occlusion produced (if any) is of

sufficient magnitude and duration to cause ischemia during walking and other physical activities, that

can lead to chronic tissue atrophy. Preliminary studies have shown that patellar tendon bearing (PTB)

prosthetic sockets occlude transtibial amputees’ residual limb circulation. Specifically, the project

researches whether: (1) didactically taught and commonly clinically applied PTB sockets occlude

transtibial amputees’ popliteal arterial circulation, and (2) the circulatory occlusion so produced causes

ischemia in residual limb tissues during periods of moderate to strenuous exercise.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-65

Field-Initiated Projects (FIPs)

North Carolina

ABC-Link: A Web-Based Literacy Assessment Tool for Students with

Significant Disabilities

University of North Carolina at Chapel Hill

Allied Health Sciences

CB# 7335, TR48

Chapel Hill, NC 27599-7335

Karen_Erickson@med.unc.edu

Principal Investigator: Karen Erickson, PhD

Public Contact: 919/966-8828; Fax: 919/843-3250

Project Number: H133G020133

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 02 $149,733; FY 03 $149,688

Abstract: This development project is designed to create a web-based assessment tool, ABC-Link,

that provides accessible reading assessment tasks via an innovative interface that simultaneously

supports students with severe speech and physical impairments (SSPI) and the adults who assess them.

Through its use of state-of- the-art technology, ABC-Link is an interactive site that: (1) guides the

assessment as it progresses based on a model of behavioral and test-administration efficiency, (2) feeds

the assessment results back to an expert team for interpretation, (3) guides the adult in conducting

further assessment as necessary, and (4) provides a suggested plan of intervention.
3-66 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Field-Initiated Projects (FIPs)

Oregon

Information Technology Access for Adults with Cognitive Disabilities:

Participatory Development of a Model for Software Accessibility,

Training, and Support

Eugene Research Institute

132 East Broadway, Suite 747

Eugene, OR 97401

tkeating@eugeneresearch.org

www.eugeneresearch.org

Principal Investigator: Thomas Keating, PhD

Public Contact: 541/342-3763; Fax: 541/342-4310

Project Number: H133G010162

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 01 $149,996; FY 02 $149,994; FY 03 $149,738

Abstract: This project improves IT access for persons with significant cognitive disabilities through

participatory development of a model incorporating accessible life skills software, effective consumer

training, and innovative methods for ongoing technical support. Many persons with significant cognitive disabilities are excluded from the benefits of IT because software interfaces are too complex, the

content is not relevant to their life management requirements, and not enough is known about their

training and technical support needs. This project builds on previous efforts in development of life

skills software to produce a field-tested and expanded array of applications along with a replicable

model for training and technical support in home, community, and educational settings. Based on the

project’s participatory development approach, persons with cognitive disabilities are integrally involved in research, development, and dissemination activities.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-67

Field-Initiated Projects (FIPs)

Pennsylvania

The Efficacy of Computer and Sense Wear Technologies for Promoting

Health in Adults with Fibromyalgia: A Randomized Clinical Trial

University of Pittsburgh

5012 Forbes Tower

Pittsburgh, PA 15260

jcr@pitt.edu

Principal Investigator: Joan Rogers, PhD; Margo Holm, PhD

Public Contact: Joan Rogers, 412/383-6621; Fax: 412/383-6613

Project Number: H133G020159

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $149,996; FY 03 $149,966

Abstract: This study uses a cognitive-behavioral intervention to facilitate adoption of a wellness

lifestyle in people with fibromyalgia. Specifically, researchers test the efficacy of an Internet-based

health promotion computer program used in conjunction with a wearable sensor (SenseWearTM) for

developing a wellness lifestyle and improving the quality of life of adults with fibromyalgia. Consumers are assisted in: (1) establishing goals in the areas of physical activity, nutrition, participation in

meaningful, productive activities, sleep, stress-reducing activities, and emotional state; (2) monitoring

progress toward established goals; and (3) assessing the relationship between these areas in one’s daily

life. In addition, based on consumer input, the program offers suggestions for developing a wellness

lifestyle. SenseWearTM provides objective data about activity level and stress level for consumers to

use in combination with the self-assessment data provided by the Internet program.
3-68 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Field-Initiated Projects (FIPs)

Tennessee

Factors Affecting Directional Hearing Aid Performance in Children

Vanderbilt University School of Medicine

Vanderbilt Bill Wilkerson Center for Otolaryngology and Communication Sciences

1114 - 19th Avenue South

Nashville, TN 37212

todd.a.ricketts@vanderbilt.edu

Principal Investigator: Todd A. Ricketts, PhD

Public Contact: 615/936-5258; Fax: 615/936-5013

Project Number: H133G020097

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $149,576; FY 03 $149,844

Abstract: This project investigates quantification of the angular position of children’s heads in classroom environments and measurements of speech understanding and classroom performance in environments that simulate the most common listening situations children experience. Directional hearing

aids represent one of the few technologies that have the potential to positively impact children’s speech

understanding in classroom environments without requiring hardware external to the child. These

instruments work by reducing amplification for sounds arriving from behind the child, relative to that

provided for sounds arriving from the front. Therefore the intensity level delivered to a child’s ear for

sound sources of interest will be greater than that of other sounds, if the assumption is made that the

child will face the sound source of interest. Unfortunately, the angle at which children position their

heads in classroom environments is unknown. In addition, the magnitude of improvement in speech

intelligibility and classroom performance afforded by directional hearing aids in comparison to their

traditional, omnidirectional counterparts in real classroom environments is unknown.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-69

Field-Initiated Projects (FIPs)

Utah

Bottom-Up Modeling Of Mass Pedestrian Flows: Implications for the

Effective Egress of Individuals with Disabilities

Utah State University

Center for Persons with Disabilities

6800 Old Main Hill

Logan, UT 84322

keithc@cpd2.usu.edu

Principal Investigator: Keith Christensen, MLA

Public Contact: 435/797-3997; Fax: 435/797-7219

Project Number: H133G030013

Start Date: November 1, 2003

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $150,000

Abstract: The purpose of this research project is to improve the exit of individuals with disabilities

from buildings and other settings in emergencies. The project researches the effect of the current and

proposed Americans with Disabilities Act Accessibility Guidelines (ADAAG) for the built-environment on the egress of individuals with disabilities during the mass pedestrian flows (MPFs) triggered

by health-safety events, and the effect of security-oriented design methods on the egress of individuals

with disabilities during health-safety event triggered MPFs. The objective of the project is to measure

the emergent behaviors of the diverse sample populations of six representative built-environments (an

airport, high school, conference center, multi-story office building, federal development, and secured

federal development) during simulated health-safety events. An intervention (modification of the

design character of the built-environment) is applied to eliminate conditions occurring during MPFs,

which adversely effect the egress of individuals with disabilities.
3-70 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Field-Initiated Projects (FIPs)

Virginia

The Braille Power Reader Program

Science Applications International Corporation

4001 Fairfax Drive, Suite 450

Arlington, VA 22203

hintond@saic.com

Principal Investigator: Daniel E. Hinton

Public Contact: 703/248-7717; Fax: 703/522-6006

Project Number: H133G010028

Start Date: August 1, 2001

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $149,839; FY 02 $149,565; FY 03 $149,956

Abstract: This project develops hardware and software that provides people who are deaf-blind or

blind with access to much of the digital media and technology that is available to sighted people in

academic and employment environments. Development efforts include both newly designed hardware

and software and improvements on legacy products previously designed by Science Applications

International Corporation (SAIC) and Tactilics. These products integrate enhanced hardware and

software and provide 40- character electronic braille access to computers and all forms of IT. Development of the braille Reader system is initially focused on the needs of people who are deaf- blind

because of the close relationship between SAIC and the Helen Keller National Center (HKNC), but

the display technology is also important to people who are only blind. The teaming arrangement of

SAIC, Tactilics, and HKNC assures that the needs of all people who may benefit from using the

system—blind and deaf-blind—are met.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-71

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Arizona

Development of a Collapsible Folding Manual Wheelchair

Three Rivers Holding, LLC

1826 West Broadway Road, Suite 43

Mesa, AZ 85202

david@3rivers.com

www.3rivers.com

Principal Investigator: Chris Willems

Public Contact: David Boninger, 480/833-1829

Project Number: H133S020103

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $74,950; FY 03 (No-cost extension through 8/31/2003)

Abstract: This project creates and tests a prototype of a compact, forward- folding, ultra-light manual

wheelchair. This wheelchair maximizes mobility in a variety of environments and eases the demands of

travel on wheelchair users. The wheelchair improves access to and maneuverability in narrow environs

such as those encountered in compact dwellings, offices, restroom facilities, and transportation means.

The innovative design enables the wheelchair to fit down the aisle of airplanes, and be collapsed and

stowed in the overhead compartment. It is more easily placed in the trunk of a car than standard wheelchairs. The wheelchair is designed with an adjustable axle, adjustable backrest and seat angle, a

suspension element, and a rigid frame environment. The prototype is tested to insure that: (1) its

dimensions meet targeted space constraints, (2) it meets or exceeds currently approved ANSI/RESNA

Standards, and (3) it performs equivalently or better than other comparable manual wheelchairs on

ANSI/RESNA tests.
3-72 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Small Business Innovative Research (SBIR), Phase I

Arkansas

Absolute Head Pointing for Accessing Assistive Devices

InvoTek, Inc.

1026 Riverview Drive

Alma, AR 72921

tjakobs@invotek.org

www.invotek.org

Principal Investigator: Thomas Jakobs (InvoTek); David Beukelman (University of NebraskaLincoln), 479/632-4166 (Jakobs); 402/472-5463 (Beukelman)

Public Contact: Fax: 479/632-6457

Project Number: H133S020106

Start Date: October 15, 2002

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $75,000; FY 03 (No-cost extension through 8/31/2003)

Abstract: This research investigates the feasibility of a new “absolute” head- pointing strategy for

people who require an assistive device to manipulate a computer cursor. This “absolute” system links

the position of a computer cursor to the direction the user’s head is pointing, and stays aligned with the

user’s head regardless of repositioning movements. This system enables a user to guide a cursor by

aiming his or her head at a desired target location, potentially simplifying the task of learning and

utilizing such a system. The design takes advantage of new, low-cost, infrared cameras, and requires

only three passive sensors to be attached to the user.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-73

Small Business Innovative Research (SBIR), Phase I

California

Automated Closed Captioning

Automatic Sync Technologies

4460 Quicksilver Court

Hayward, CA 94542

kevin@automaticsync.com

www.automaticsync.com

Principal Investigator: Kevin Erler, PhD

Public Contact: 510/582-3437; Fax: 510/582-3437

Project Number: H133S030048

Start Date: October 1, 2003

Length: 6 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $75,000

Abstract: The aim of this project is to develop an automated web-based system that accepts the

electronic submission of video programming content and automatically and rapidly returns closed

captioning for this content. This project applies automatic speech processing techniques to the automation of closed captioning, thereby significantly lowering costs and turnaround times. The limitations of

speech recognition as commonly found in commercial applications, which must rely on pre- defined

grammars that must try to anticipate anything that can be said or on training to individual speakers, are

circumvented using program transcripts to focus on alignment and segmentation in closed captioning

display. This research establishes a proof-of-concept prototype that makes captioning more accessible

to educational institutions hit hard by budget restrictions, and makes incorporation of closed captioning

more attractive to business.
3-74 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Small Business Innovative Research (SBIR), Phase I

California

Manual Wheelchair Utilizing Single Lever for Propulsion

Bart Kylstra

20 Scott Alley

San Francisco, CA 94107

kylstra@mindspring.com

Principal Investigator: Bart Kylstra

Public Contact: 415/385-4508

Project Number: H133S030134

Start Date: October 1, 2003

Length: 6 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $74,760

Abstract: This project develops an innovative manual wheelchair design that utilizes a lever for

propulsion. Use of a lever promotes a natural and efficient motion. Traditional pushrim wheelchairs

require an awkward motion that leads to injuries of the shoulders, elbows, and wrists for the majority

of users. The lever design utilizes a single lever for propulsion located between the user’s knees.

Steering and braking is with a bicycle-style handlebar attached to the top of the lever. The flexibility of

this approach has allowed a novel wheelchair frame design to be developed. Users and wheelchair

experts have found that this design provides superior overall mobility and greater therapeutic physical

conditioning.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-75

Small Business Innovative Research (SBIR), Phase I

Colorado

Job Quest, an Internet-based, Self-directed Career Exploration and

Assessment System For Students and Adults with Significant

Intellectual Disabilities

AbleLink Technologies, Inc.

528 North Tejon Street, Suite 100

Colorado Springs, CO 80903-1158

dan@assess.net

www.ablelinktech.com

Principal Investigator: Daniel K. Davies

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S030045

Start Date: October 1, 2003

Length: 6 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 03 $75,000

Abstract: This project develops and evaluates Job Quest, an Internet-based, self-directed multimedia

career exploration and assessment system for improved job placement of students and adults with

mental retardation. The Job Quest system: (l) facilitates self-directed exploration of jobs and job tasks

via a media-enriched computer environment using digital pictures, audio, and video; (2) enables job

developers to identify jobs that match the individual’s job interests through automated searching of the

Department of Labor’s O*NET jobs database; and (3) provides the ability for job developers and

employment specialists to customize the content of the system to represent specific jobs which are

available in the local community.
3-76 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Small Business Innovative Research (SBIR), Phase I

Colorado

WorkRight: A Customizable Software System Providing an Interactive

Training Environment for Social Skills in the Workplace

AbleLink Technologies, Inc.

528 North Tejon Street, Suite 100

Colorado Springs, CO 80903-1158

steve@assess.net

www.ablelinktech.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S030127

Start Date: October 1, 2003

Length: 6 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 03 $75,000

Abstract: This project presents WorkRight, a state of the art computer based simulator application

designed to provide personalized, self-directed social skills training for individuals with intellectual

disabilities on community-based vocational social skills. Deficits in social skills is one of the greatest

barriers to successful community-based employment for individuals with intellectual disabilities.

Current methodologies for social skills training are generally very expensive, requiring one-to- one

attention and a personalized curriculum to address the specific needs of different individuals. However,

recent advances in computer-based simulation technology has created an opportunity to provide self

directed computer-based social skills training that can be customized to reflect a trainee’s actual work

environment and address a wide variety of social skills training needs.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-77

Small Business Innovative Research (SBIR), Phase I

Florida

Development of Virtual Pencil+ Algebra as a Teaching and Equation

Processing Tool For Blind or Visually Disabled Students

Henter Math, LLC

8335 37th Avenue North

St. Petersburg, FL 33710

info@hentermath.com

www.hentermath.com

Principal Investigator: Ted C. Henter

Public Contact: Emley Henter, 727/347-1313; Fax: 727/302-9422

Project Number: H133S030198

Start Date: October 1, 2003

Length: 6 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $74,000

Abstract: For this project, Henter Math takes its current product, the Virtual Pencil I (a program which

makes arithmetic accessible to blind and disabled students through use of speech, Braille, and enhanced graphical interface) and extends it by creating a prototype Virtual Pencil Plus Algebra (VP+).

The VP+ presents algebraic information in an audible or tactile format with interactive navigation

tools. The student with visual disabilities can use this program to learn the process of solving algebraic

equations and as a workspace for solving equations. The VP+ provides the user with verbal and nonverbal cues to read the equation and include programmable commands to allow flexibility in navigating

and manipulating the equation. There is a serious need for educational software to help students with

disabilities, particularly visual disabilities, who cannot use pencil and paper and therefore require an

alternative environment for manipulation of numbers.
3-78 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Small Business Innovative Research (SBIR), Phase I

Maryland

StoryTiles: Programmable Manipulatives to Improve Language,

Sequencing, and Imaginative Play Skills in Children with Autism

Intelligent Automation, Inc.

7519 Standish Place, Suite 200

Rockville, MD 20855

smayhew@i-a-i.com

www.i-a-i.com

Principal Investigator: Shannon Beltz Mayhew

Public Contact: 301/294-5230; Fax: 301/294-5201

Project Number: H133S030095

Start Date: October 1, 2003

Length: 6 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $75,000

Abstract: This project develops and field tests a manipulative device that fosters language, sequencing, and imaginative play skills among children with a diagnosis of autism. Children are able to use the

device to experiment with picture sequencing, cause and effect, storytelling, and language structures as

they manipulate programmable, tangible objects. This unique tactile context for the development of

these skills addresses the concept that many children connect most strongly with their world through

touch. Project objectives include: (1) design several sets of manipulatives to be used in case studies

with children with autism, (2) extend IAI’s cradle technology to work with the new manipulatives, (3)

manufacture and test manipulatives, (4) design activities for use of Storybuilder in field study, and (5)

conduct case studies with children with autism to determine pedagogical feasibility of the device.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-79

Small Business Innovative Research (SBIR), Phase I

Massachusetts

Development of a High Bandwidth Individualized Wireless Network

Talking Lights, LLC

28 Constitution Road

Boston, MA 02129

al@talking-lights.com

www.talking-lights.com

Principal Investigator: Al-Thaddeus Avestruz

Public Contact: Neil Lupton, 617/242-0050; Fax: 617/242-0046

Project Number: H133S020043

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $75,000; FY 03 (No-cost extension through 5/15/2003)

Abstract: This project researches the feasibility of a high bandwidth individualized wireless network

that is personalized to maximize flexibility and capacity for individual users and minimize interference,

crosstalk, and extraneous information. The system is developed in connection with experts on deafness

and visual impairments. It is evaluated and tested in schools specializing in education of students with

disabilities.
3-80 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Small Business Innovative Research (SBIR), Phase I

Minnesota

Independently Operable Device Mounting and Positioning Technology

for Persons with Disabilities

Blue Sky Designs, Inc.

540 Fairview Avenue, North

Suite 207

St. Paul, MN 55104

dianne@blueskydesigns.us

www.blueskydesigns.us

Principal Investigator: Dianne Goodwin

Public Contact: 651/603-0828; Fax: 651/917-0137

Project Number: H133S030118

Start Date: October 1, 2003

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 03 $74,990

Abstract: This project researches a modular mounting system, attaching to wheelchairs or tables,

which individuals with limitations in strength, reach, and dexterity can access, reposition, and attach

devices to independently. Accessible components allow the user to lock it into a stable position, unlock

it, and change the tilt. Existing mounts require assistance to move, adjust, and attach or remove devices, reducing the user’s independence. This system may be safely and easily operated by people with

significant limitations. Its dual linkage support arms allow flexible positioning and movement in a

horizontal plane. It may be set to return to and lock in a specific location. Multiple devices may attach

to the upright support post, making it possible to perform two tasks concurrently.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-81

Small Business Innovative Research (SBIR), Phase I

New Jersey

HARI: The Hand-Arm Rehabilitation Interface for Training the Hand

Following Paralysis

Nian-Crae, Inc.

13 Cortland Drive

Somerset, NJ 08873

info@niancrae.com

Principal Investigator: James Flint, 732/445-2369

Public Contact: William Craelius, 732/801-8395

Project Number: H133S030197

Start Date: October 1, 2003

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 03 $75,000

Abstract: This project develops the Hand Arm Rehabilitation Interface, (HARI) a tool for re-training

the hand and the arm after paralysis. HARI helps therapists and their clients guide the paralytic arm

through the rehabilitation process by encouraging and monitoring prescribed exercises, while simultaneously serving as an assessment and record keeping tool. HARI is a computer guided motion feedback system. It prompts the user to make specific movements with the arm and/or hand, senses movements accomplished with the use of sensors placed in critical locations, informs the user through a

visual display of his/her success at performing the movements, and keeps track of the user’s performance. HARI addresses an urgent need of the stroke population for a practical arm rehabilitator,

focusing on fine motor control. The design of HARI has broad applicability to arm and hand retraining. It is adapted from technology that has been developed and patented by Nian-Crae, Inc. for

restoring hand dexterity to amputees. Its commercial potential is large and it is affordable for home use.
3-82 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Small Business Innovative Research (SBIR), Phase I

North Carolina

A Feel-Beyond Fingers Device for the Blind

Vortant Technologies, LLC

88 High Country Road

Weaverville, NC 28787

phil@vortant.com

Principal Investigator: Philip Schaefer

Public Contact: 828/645-1026; Fax: 801/650-2234

Project Number: H133S030187

Start Date: October 1, 2003

Length: 6 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 03 $74,980

Abstract: This project creates a miniature, non-intrusive device for blind individuals, to in effect,

extend the sense of touch beyond the fingertips. At arm’s length, its resolution is high, and it has a

maximum range of about ten meters. The device is most useful for newly or completely blind individuals, and most profound for navigation and for locating and manipulating nearby objects, especially in

unfamiliar, hazardous, or unsanitary environments. Based on an innovative object-sensing technology,

the Feel-Beyond-Fingers device has several significant advantages: it is significantly smaller than most

sensing devices, it does not require the use of either hand, it has very low power requirements, and it is

made of allow-cost parts. Evaluation of the device includes laboratory testing of accuracy and range, as

well as preliminary usage and feedback from blind individuals.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-83

Small Business Innovative Research (SBIR), Phase I

Pennsylvania

Developing a Versatile, Affordable, Wheelchair-Mounted Robotic Arm

Based on the Arlyn FeederBot Design

Arlyn Toolworks

155 Shughart Road

Carlisle, PA 17013-9228

osbornej@epix.net

www.arlyntoolworks.com

Principal Investigator: Joseph Osborne

Public Contact: 717/249-7729; Fax: 717/249-0774

Project Number: H133S020121

Start Date: September 30, 2002

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $74,096; FY 03 (No-cost extension through 5/15/2003)

Abstract: This project modifies the existing prototype Arlyn FeederBot and uses it as a test bed to

investigate the use of that design as a general-purpose wheelchair-mounted robot arm. Researchers

develop methods of handling objects in structured and unstructured environments and incorporate the

ability to use many different control methods. The resulting product permits many people with severe

paralysis to have greater independence and quality of life and to become employed or better employed.
3-84 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Small Business Innovative Research (SBIR), Phase I

Utah

Practical Force Feedback System for Upper Limb Prosthesis Users

Motion Control, Inc.

2401 South 1070 West, Suite B

Salt Lake City, UT 84119-1555

harold@utaharm.com

www.utaharm.com

Principal Investigator: Harold H. Sears, PhD

Public Contact: 801/978-2622; 888/696-2767; Fax: 801/978-0848

Project Number: H133S020006

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $75,000; FY 03 (No-cost extension through 6/30/2003)

Abstract: This project develops a practical grip-force feedback system for upper-limb prosthesis users

that enables wearers to sense the grip force of their terminal device (TD). Prototypes of a grip force

sensor and a method of direct force feedback to the wearer are developed, as well as a method for

gravity compensation of a body-powered version of the Utah Arm. Previous experiments have demonstrated that force feedback can improve the prosthesis wearer’s control of an electric TD. By developing a practical system to implement force feedback into a myoelectric hand, the next generation of

myoelectric hand wearers will potentially have greatly improved control, more natural sensation of

their prehension, and reduced dependence on visual feedback to moderate grip force. Growing use of

myoelectric devices by amputees is causing growth in the prosthetics market. Adding a practical

feedback system will greatly enhance the prostheses for this population.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-85

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Arizona

Development of Collapsible Folding Manual Wheelchair - Phase II

Three Rivers Holdings, LLC

1826 West Broadway Road, Suite 43

Mesa, AZ 85202

david@3rivers.com

www.3rivers.com

Principal Investigator: Chris Willems

Public Contact: David Boninger, 480/833-1829; Fax: 480/833-1837

Project Number: H133S030016

Start Date: October 1, 2003

Length: 24 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 03 $247,048

Abstract: In Phase I, this project designed, built, and conducted bench-top testing of a compact,

forward-folding, ultralight manual wheelchair with an innovative design that incorporates “swingdown” access wheels for navigation in confined areas. This facilitates access to narrow environs such

as those encountered in compact dwellings, offices, restrooms, and transportation settings. When using

the access wheels, the wheelchair also fits down the aisle of airplanes and collapses to be stowed in the

overhead compartment. The prototype has an adjustable axle, adjustable backrest and seat angle, and a

folding design that acts like a rigid frame. Testing of the prototype confirmed that it met or exceeded

ANSI/RESNA standards, and it performed equivalently or better than other comparable ultralight

manual wheelchairs on those standards. In Phase II, the project: (l) continues to make design improvements to further maximize functionality and ease of use, (2) verifies that the new design meets ANSI/

RESNA standards, (3) has wheelchair users evaluate the prototype after use in an Activities of Daily

Living Course, and (4) has users take the chair home for an extended trial-use period that allows for an

in-depth evaluation of the prototype wheelchair and allows users to compare the prototype with their

personal wheelchair on a wide variety of dimensions.
3-86 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Small Business Innovative Research (SBIR), Phase II

Arkansas

Absolute Head Tracking for Accessing Assistive Devices

InvoTek, Inc.

1026 Riverview Drive

Alma, AR 72921

tjakobs@invotek.org

www.invotek.org

Principal Investigator: Thomas Jakobs

Public Contact: 479/632-4166; Fax: 479/632-6457

Project Number: H133S030165

Start Date: October 1, 2003

Length: 24 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 03 $267,458

Abstract: This research develops a new absolute head-tracking strategy for people who require an

assistive device to manipulate a computer cursor. This absolute system links the position of a computer

cursor to the direction in which the user’s head is pointing, and stays aligned with the user’s head

regardless of repositioning movements. This system enables a user to guide a cursor aiming his or her

head at a desired target location, simplifying the task of learning and utilizing such a system. The

design takes advantage of low-cost infrared camera, and requires only three passive sensors to be

attached to the user.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-87

Small Business Innovative Research (SBIR), Phase II

Maryland

CD-ROM to Teach Cued Speech

Institute for Disabilities Research and Training

11323 Amherst Avenue

Silver Spring, MD 20902

angela@idrt.com

www.idrt.com

Principal Investigator: Angela Bednarczyk, PhD

Public Contact: 301/942-4326; Fax: 301/942-4439

Project Number: H133S030009

Start Date: October 1, 2003

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $249,979

Abstract: This project develops a self-taught, self-paced, interactive computer program to teach Cued

Speech. The instructional program is distributed on a CD- ROM. In the previous research phase, all of

the content and planning for a Cued Speech instructional computer program was completed and

prototype software that showed one introductory section and two classes of materials was created. The

current phase involves the refining of the content and the completed design of software containing all

introductory and background information and 15 classes. The software is then tested, revised, and

prepared for formal production and distribution. This project results in complete development of a CDROM that contains a simple-to-use, 15-lesson instructional program in Cued Speech and background

information about its history and the people who use it (e.g., professionals, family members).
3-88 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Small Business Innovative Research (SBIR), Phase II

Maryland

Web-Based Telerehabilitation for Home Assessment and Monitoring

AnthroTronix, Inc.

8737 Colesville Road, 10th Floor

Silver Spring, MD 20910

info@atinc.com

www.atinc.com

Principal Investigator: Amy Brisben, PhD, 301/495-0770, ext. 344

Public Contact: Regina Reed, 301/495-0770, ext. 348; Fax: 301/585-9075

Project Number: H133S030037

Start Date: October 1, 2003

Length: 24 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 03 $292,557

Abstract: This project aims to enhance functionality and clinically evaluate CosmoWebTM, a remote

therapy monitoring and teleassessment system. Children with disabilities perform therapeutic exercises

while playing interactive software games featuring CosmoBotTM, an alien robot. CosmoWebTM

consists of: (1) games; (2) Mission Control, a child-friendly computer interface system with customized

and off-the-shelf therapy sensors, designed to interact with CosmoBotTM’s games; and (3) video,

audio, and data transmission capabilities for telerehabilitation purposes. Custom games address therapy

goals more effectively than currently-existing, off-the-shelf games designed for entertainment more

than educational or therapeutic purposes. While playing these games using body movement, or gestural

interfaces, the child carries out exercises designed to meet therapy goals. CosmoWebTM allows the

therapist to remotely monitor the therapy-game session during or after the session takes place. Data

from many sessions can be viewed to evaluate the child’s progress in meeting therapy goals over time.

Objectives are to finalize CosmoWebTM design and development and evaluate the system effectively

in two telerehabilitation scenarios: between two clinics and between clinic and home.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-89

Small Business Innovative Research (SBIR), Phase II

Massachusetts

Natural Language Speech Access of Computers by the Disabled

Amazability, Inc.

14 Lorraine Circle

Waban, MA 02468

amazability@rcn.com

Principal Investigator: Kenneth R. Ingham, PhD

Public Contact: 617/795-0134

Project Number: H133S030005

Start Date: October 1, 2003

Length: 24 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $219,595

Abstract: This project implements a natural language processor to facilitate complex interactions and

to make the overall system readily usable by the computer non- literate or non-technical. The Phase I

work confirmed that a speech-based set of complex applications, using automatic speech recognition

for command and control, could be effectively used by people with visual impairments. Mechanisms

were implemented and tested that allowed users to avoid becoming lost owing to any form of interruption. The work showed that, while simple commands could be successfully recognized, longer complex commands were more difficult because users tended to lose their place while assembling their

precise syntax. Therefore, the design and implementation of a natural language processor to support

the issuing of complex instructions was indicated. In this phase, the automatic speech recognition

subsystem is improved in accordance with the results of the Phase I work and its vocabularies increased to approximately 120,000 words composed of dynamically variable 50,000 word language

models. The resulting large vocabulary recognition system, supporting natural language interaction is

evaluated through focus group and human subject testing. The Adept 1000, equipped with a natural

language processor, can serve as a universal reading system for multipart documents (digital, analog,

hypertext, etc.). As an integrated voice-based system, it can also support web access, e-mail, and word

processing, thereby becoming a universal access tool for reading and writing. By providing very large

vocabulary automatic speech recognition and natural language processing of commands, the technical

nature of the computer system is minimized.
Small Business Innovative Research (SBIR), Phase II

New York

Development of an Audio/Tactile Atlas of the World for Use by

Individuals Who Are Blind or Visually Impaired

Touch Graphics

330 West 38th Street, Suite 1204

New York, NY 10018

sl@touchgraphics.com

www.touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 646/515-3492; Fax: 212/375-6341

Project Number: ED-01-CO-0125

Start Date: September 1, 2001

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $148,907; FY 02 $148,907; FY 03 (No-cost extension through 12/16/2003)

Abstract: This project creates a new and innovative Atlas of the World that is fully accessible to

readers who are blind, who have visual impairments, or who have other print disabilities. The atlas is

an accessory application for the Talking Tactile Tablet created by Touch Graphics, a computer peripheral device on which raised-line and textured (tactile) plastic overlay sheets can be mounted. Users

press shapes, regions, and icons on the tactile surface to instigate interactions with a human-voice

narrator. A menu system allows the user to select from a number of operational modes that provide

access to a database of sociopolitical and geographical map information. National Geographic maps

provide cartographic content and associated information at no cost to the project, and act as advisors to

the project to ensure that the product meets current standards for print atlases.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-91

Small Business Innovative Research (SBIR), Phase II

New York

Development of an Audio/Tactile Accommodation for Delivery of

Standardized Math Tests to Students Who Are Blind or Visually

Impaired

Touch Graphics

330 West 38th Street, Suite 1204

New York, NY 10018

sl@touchgraphics.com

www.touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 646/515-3492; Fax: 212/375-6341

Project Number: ED-01-PO-3667 (3-4)

Start Date: September 1, 2002

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $148,190; FY 03 $148,190

Abstract: This project includes the design, implementation, and evaluation of a system for delivering

standardized math tests, and other assessments that include references to graphic material, to individuals who are blind, have a visual impairment, or who have other print disabilities. This system allows a

user to scroll through test items, listen to a trained human-voice narrator read questions and answer

choices, and refer to interactive raised-line and textured (tactile) diagrams. When the user presses

various regions and shapes on these diagrams, the narrator describes the feature of the drawing or

illustration that is touched. The test delivery accommodation also incorporates a talking calculator, a

timer, and a database for automatically capturing statistics on student performance. The system is based

on standards already established and proven effective for audio-tactile computer applications; it is

designed to be used in conjunction with the Talking Tactile Tablet, a simple, durable, and inexpensive

computer peripheral.
3-92 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Small Business Innovative Research (SBIR), Phase II

New York

Online Instruction Tools for Teaching Mathematical Problem Solving

to Learning Disabled Students

Learnimation

53 West 90th Street #4

New York, NY 10024

Principal Investigator: Sarah Manning

Public Contact:

Project Number: ED-02-R-0012 (3-5)

Start Date: September 30, 2002

Length: 24 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 02 $159,068; FY 03 $150,000

Abstract: This project builds a bundled set of web-based validated intervention tools to improve

mathematical problem-solving outcomes of middle school students with learning disabilities. Utilizing

instructional strategies proven by educational researchers to be effective in addressing the needs of

students with learning disabilities, this software application focuses on the full set of cognitive processes, metacognitive activities, and affective factors required to attain proficiency in mathematical

problem solving. In order to develop students’ mathematical problem solving skills, interventions

designed to address this scope and sequence of skills and abilities is presented within the context of

motivating, life-based animated word problems. The application teaches general problem-solving

strategy and explicit cognitive mathematical sub-skills.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-93

Small Business Innovative Research (SBIR), Phase II

New York

Development of an Authoring Tool to Allow Teachers to Create AudioTactile Materials for Blind and Visually Impaired Students

Touch Graphics

330 West 38 Street, Suite 1204

New York, NY 10018

sl@touchgraphics.com

www.touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 646/515-3492; Fax: 212/375-6341

Project Number: H133S030036

Start Date: October 1, 2003

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $232,243

Abstract: This project focuses on the design, implementation, and evaluation of an authoring tool that

allows teachers to create customized audio-tactile educational materials for students who are blind, or

have other visual or print disabilities. Teachers create raised-line and textured graphic imagery on premade templates sheets, place these sheets on a touch-sensitive device connected to a computer, and

program the graphic with descriptive audio “tags”. Later, a student interacts with the system by pressing regions and shapes on the tactile surface to instigate appropriate audio responses. The goals of this

project are: (1) creation of a market-ready suite of software applications for creating, reading, and

transferring teacher-produced audio-tactile courseware; (2) a software sharing website to encourage

wide-scale adoption of the authoring tool product and to proliferate the teacher- generated materials;

(3) findings on the potential for adapting a variety of methods for producing tactile graphic images to

the authoring tool system; (4) a complete braille tutorial application as a demonstration of the system’s

full capabilities, ready for distribution via Internet; (5) results of a large scale evaluation of teacherproduced audio-tactile materials in the United States and in selected foreign countries; and (6) investigation of the potential for the authoring tool system to be adapted for use in the transcription of entire

illustrated textbooks and full-scale curricula.
3-94 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Small Business Innovative Research (SBIR), Phase II

Pennsylvania

The Next Generation of Audio-Based Assistive Technology: An

Instantaneous Customizable Audio Pegging System

TranXecute

1009 Arch Street

2nd Floor

Philadelphia, PA 19107

chang_leonard@hotmail.com

Principal Investigator: Leonard Chang

Public Contact: 610/527-9288; Fax: 610/527-6304

Project Number: H133S030030

Start Date: October 1, 2003

Length: 24 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $251,900

Abstract: This project developes an Audio Pegging System which allows for the instant lacing of an

audio source to its corresponding transcript or vice versa, utilizing a human voice rather than a computer synthesizer, and enables the user to click on any part of the text and hear its matching audio

immediately. It is akin to a word processor with audio processing capabilities, allowing the user to

instantly create a customized text-and-audio-laced file, which users can cut and paste, and e- mail just

like a word processor document. More importantly, this product enables users to search efficiently

through audio. In Phase I, the project successfully created a proof-of-concept prototype, which has

proven the technical merit and feasibility of the Audio Pegging System (APS). Based on this foundation, Phase II expands on the proof-of- concept prototype to construct a full application version of this

system to be made available to the general public.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-95

Small Business Innovative Research (SBIR), Phase II

Pennsylvania

GOODFEEL® Braille Music Translator

Dancing Dots Braille Music Technologies, LP

1754 Quarry Lane

P.O. Box 927

Valley Forge, PA 19482-0927

info@DancingDots.com

www.dancingdots.com

Principal Investigator: William R. McCann

Public Contact: 610/783-6692; Fax: 610/783-6732

Project Number: H133S030040

Start Date: October 1, 2003

Length: 24 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 03 $250,000

Abstract: This project integrates SharpEye’s scanning functions and Lime’s editor with GOODFEEL

to create a single application that allows one to scan, edit, and transcribe a printed page into the equivalent music braille through a single user interface equally accessible to both sighted or blind users. In

1997, Dancing Dots released GOODFEEL®, the world’s first Braille music translator. To create

braille scores, sighted non-specialists, who need not know braille but who must read printed music,

employ mainstream and assistive technology in a three-step process: scanning (SharpEye), editing

(Lime), and transcribing (GOODFEEL). Although GOODFEEL produces high-quality music braille,

users have too often found it overly labor-intensive and its relationship to mainstream music software

difficult to understand, discouraging many overworked or unsophisticated potential users.
3-96 NIDRR Program Diretory FY 2003 - Technology for Access & Function

Small Business Innovative Research (SBIR), Phase II

Utah

Practical Force-Feedback System for Upper-Limb Prosthesis Users

Motion Control, Inc.

2401 South 1070 West, Suite B

Salt Lake City, UT 84119-1555

harold@utaharm.com

www.utaharm.com

Principal Investigator: Harold H. Sears, PhD

Public Contact: 801/978-2622; 888/696-2767; Fax: 801/978-0848

Project Number: H133S030177

Start Date: October 1, 2003

Length: 24 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $249,062

Abstract: This project develops a practical Grip-Force Feedback (GFF) system for upper-limb prosthesis users, which enables wearers to sense the grip force of their terminal device (TD). During Phase

I, successful prototypes of a grip force sensor and a method of direct force feedback to the wearer were

developed. Furthermore, several methods for gravity compensation of a body-powered version of the

Utah Arm were designed, built, and tested. In Phase 2, Motion Control further develops these systems

toward field trial versions, which are tested with prosthesis wearers. Preliminary experiments have

demonstrated that force feedback can improve the prosthesis wearer’s control of an electric TD. By

developing a practical system to implement force feedback into a myoelectric hand, the next generation

of myoelectric hand wearers will have potentially greatly improved control, more natural sensation of

their prehension, and reduced dependence on visual feedback to moderate grip force.
NIDRR Program Diretory FY 2003 - Technology for Access & Function 3-97

Small Business Innovative Research (SBIR), Phase II

Virginia

Remote Access Screen Reader Architecture Math System (RA SRAMS)

Automated Functions, Inc.

7700 Leesburg Pike, Suite 420

Falls Church, VA 22043

autofunc@cs.com

Principal Investigator: Ronald A. Morford

Public Contact: 703/883-9797; Fax: 703/883-9798

Project Number: H133S030012

Start Date: October 1, 2003

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $250,000

Abstract: The objective of the Remote Access Screen Reader Architecture Math System (RA

SRAMS) is to design, develop, and test a computer based system, which enables remote access to

math by students and teachers with visual impairments. The access is via the Internet so the student and

teacher may be at different locations when using RA SRAMS. The software uses successful screen

reading architecture to enable visually impaired students to independently manipulate math expressions

to solve math problems. RA SRAMS provides tools that make it easier for a student with a visual

impairment to succeed in higher math (i.e., Algebra I, Algebra II, Trigonometry, and Calculus). This

system provides the means for thousands of visually impaired students to succeed in higher math and

therefore be qualified to fill the ever-increasing technical job and educational positions.
Independent Living and Community Integration

Independent living recognizes that each person has the right to independence

through maximum control over his or her life, based on an ability and opportunity

to make choices in performing everyday activities. These activities include:

managing one’s personal life; participating in community life; fulfilling social roles,

such as marriage, parenthood, employment, and citizenship; sustaining selfdetermination; and minimizing physical or psychological dependence on others.

Community integration incorporates ideas of both place and participation, so that a

person is physically located in a community setting, and participates in community

activities. Issues of consumer direction and control also are integral to concepts of

community integration. NIDRR’s research program encourages independent living

and community integration to achieve more successful outcomes for people with

disabilities, and it fosters the development of innovative methods to achieve these

outcomes and to measure achievement.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 2

Disability and Rehabilitation Research Projects .................................................................................. 15

Field-Initiated Projects (FIPs) .............................................................................................................. 19

Small Business Innovative Research (SBIR), Phase I ......................................................................... 46

Small Business Innovative Research (SBIR), Phase II ........................................................................ 50

NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center on Personal Assistance

Services

University of California, San Francisco

Department of Social and Behavioral Sciences

3333 California Street, Suite 455

San Francisco, CA 94118-0612

pas@itsa.ucsf.edu

www.pascenter.org

Principal Investigator: Charlene Harrington, PhD, RN, 415/476-4030

Public Contact: 866/727-9577; 415/502-7190 (V); 415-502-5216 (TTY); Fax: 415/476- 6552

Project Number: H133B031102

Start Date: July 1, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $900,000

Abstract: This project provides research, training, dissemination, and technical assistance on issues of

personal assistance services (PAS) in the United States. Center projects focus on: (1) the relationship

between formal and informal PAS and caregiving support, and the role of AT in complementing PAS;

(2) policies and programs, barriers, and new models for PAS in the home and community; (3)

workforce development, recruitment, retention, and benefits; and (4) workplace PAS models that

eliminate barriers to formal and informal PAS and AT at work. The Center is based at the University of

California, San Francisco, and includes the Topeka Independent Living Resource Center, InfoUse, the

Paraprofessional Healthcare Institute, the Institute for the Future of Aging Services, as well as faculty

members at the University of Maryland, Baltimore County Policy Sciences Graduate Program, the

West Virginia University Job Accomodation Network, and the University of Michigan’s Institute of

Gerontology and the Department Health Management and Policy. A Blue Ribbon Advisory Committee of PAS users, disability advocates, business leaders, independent living center leaders, and academics provide guidance to the project.
4-4 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Florida

Rehabilitation Research and Training Center on Positive Behavior

Support

University of South Florida

Division of Applied Research and Educational Support (DARES)

Department of Child and Family Studies

13301 Bruce B. Downs Boulevard

Tampa, FL 33612

rrtcpbs@fmhi.usf.edu

www.rrtcpbs.org

Principal Investigator: Glen Dunlap, PhD

Public Contact: Teresa White, 813/974-4612; Fax: 813/974-6115

Project Number: H133B980005

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 98 $600,000; FY 99 $600,000; FY 00 $600,000; FY 01 $600,000; FY 02

$600,000; FY 03 (No-cost extension through 9/30/2004)

Abstract: This project acquires and disseminates new knowledge to advance the field of behavior

support in school, home, and community settings. Through research and training projects, the Center

increases and enhances the effectiveness of behavior support strategies, expands the applicability of

effective practices to broader and more diverse populations, and addresses the need for effective

training, technical assistance, and widespread dissemination. The three primary research projects: (1)

expand the applicability of effective interventions, (2) increase and enhance the effectiveness of interventions, and (3) understand and describe the long-term impacts and processes of effective behavior

support. Embedded within these research projects are systematic studies of nonaversive interventions,

etiology and prevention, maintenance, self-management, and functional assessment. The three primary

training projects focus on: (1) in-service and pre-service training, (2) dissemination, and (3) technical

assistance. The Center is conducted as a consortium that includes the University of South Florida, the

University of Oregon, State University of New York (SUNY) at Stony Brook, the University of

Kansas, the University of California at Santa Barbara, and the University of California at Hayward.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-5

Rehabilitation Research and Training Centers (RRTCs)

Florida

Rehabilitation Research and Training Center for Children’s Mental

Health

University of South Florida

Florida Mental Health Institute

13301 Bruce B. Downs Boulevard MHC2335

Tampa, FL 33612-3807

kutash@fmhi.usf.edu

rtckids.fmhi.usf.edu

Principal Investigator: Robert Friedman, PhD, 813/974-4640

Public Contact: Krista Kutash, PhD, 813/974-4661 (V); 800/955-8771 (TTY); Fax: 813/974-6257

Project Number: H133B990022

Start Date: September 30, 1999

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 99 $750,000; FY 00 $750,000; FY 01 $875,000; FY 02 $750,000; FY 03

$870,000

Other funding: FY 01 $520,000 (Center for Mental Health Services), $198,911 (Children’s Board of

Hillsborough County Florida), $188,932 (Florida Dept. of Children and Families), $131,250 (USDE -

OSERS), $37968 (Texas A & M University), $22,500 (Panhandle Area Educational Cooperative),

$64,210 (Other); FY 02 $216,326 (Florida Department of Children and Families), $169,659 (Florida

Department of Education), $150,000 (US Department of Education), $132,124 (Children’s Board of

Hillsborough County), $63,750 (NIH/NIDA)

Abstract: This program conducts an integrated set of field research projects, employing multiple

methods to examine policies affecting children with emotional disturbances and their families in order

to enhance the understanding of policy development, its implementation and effects. The research

program builds on an analytic framework for understanding variables related to translation of policy

into community- level actions. The consistency of state-level policy with system-of-care principles is

examined through a series of related studies that address: family perspectives, interagency collaboration, school reform in urban communities, local theories of change and their relationship to services

and outcomes, Medicaid managed care and the State Children’s Health Insurance Program, the impact

of managed care and system-of-care policies on access to care for children of color and their families,

and development of a new instrument to assess interagency collaboration. The Center’s dissemination

approach includes conferences and meetings, peer-reviewed journal articles, research briefs, presentations, the web based and other electronic media, and technical assistance.
4-6 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Aging with

Developmental Disabilities

University of Illinois at Chicago

Department of Disability and Human Development

College of Applied Health Sciences MC 626

1640 Roosevelt Road

Chicago, IL 60608-6904

rrtcamr@uic.edu

www.uic.edu/orgs/rrtcamr

Principal Investigator: Tamar Heller, PhD

Public Contact: Alan Factor, Associate Director, 800/996-8845 (V); 312/413-1510 (V); 312/413-

0453 (TTY); Fax: 312/996-6942

Project Number: H133B031134

Start Date: October 1, 2003

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 03 $750,000

Abstract: The mission of the RRTC is to have a sustained beneficial impact on the health and community inclusion of adults with intellectual and developmental disabilities (I/DD) as they age through a

coordinated set of research, training, and dissemination activities. Major goals are: (1) improving health

and function of adults with I/DD, (2) enhancing caregiving supports and transition planning among

older caregivers and other family members, and (3) promoting aging and disability friendly environments that enable adults with I/DD to participate in community life. Each goal is addressed through

coordinated and complementary sets of activities within the core areas. Projects promoting health and

functioning include: examination of age-related changes, epidemiological surveys, research on health

care utilization, and development of community-based health promotion interventions. To enhance

caregiving supports and transition planning, RRTC research includes epidemiological surveys on

family demographic and health characteristics, including families of minority backgrounds and families

of persons with dual diagnoses of I/DD and psychiatric impairments; sibling roles and interventions in

transition planning; and consumer direction in family support. Projects examining aging and disabilityfriendly environments include research to identify features of communities and residences that hinder

and assist community integration as people with I/DD age, state policies regarding nursing home use,

and dementia care in family homes and other community residences. Training and dissemination

activities involve collaborations with national provider, professional, and consumer organizations to

enhance skills and to promote progressive interventions and policies.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-7

Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Full Participation in

Independent Living

University of Kansas Center for Research, Inc.

1000 Sunnyside Avenue

4089 Dole

Lawrence, KS 66045

rtcfpil@ku.edu

rtcfpil.org

Principal Investigator: Glen W. White, PhD, 785/864-4095

Public Contact: 785/864-4095 (V); 785/864-0706 (TTY); Fax: 785/864-5063

Project Number: H133B000500

Start Date: January 1, 2001

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $499,876; FY 02 $661,864; FY 03 $626,364

Other funding: FY 02 $299,999 (NIDRR Dissemination & Utilization)

Abstract: Through research, training, and dissemination, this project makes available person-environment strategies that enable full participation in society by persons with disabilities from diverse cultures, varying socioeconomic strata, and emerging disability populations. This mission is implemented

through multiple research and training activities that are influenced by independent living (IL) philosophy and values; for example, participatory action research is emphasized, in which consumers take an

active role throughout the research process. The RRTC develops, tests, and uses measurement tools to

investigate the interactional relationship between personal and environmental factors and their effects

on full participation in IL by the designated populations. Based on the project’s Analytical Research

Framework, the four core areas of intervention development and testing include: (1) increasing the

knowledge base about the emerging universe of disability, (2) community participation and wellness,

(3) cultural IL accommodations, and (4) personal and systems advocacy.
4-8 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center in Rehabilitation of

Persons with Long- Term Mental Illness

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

mfarkas@bu.edu; erogers@bu.edu

www.bu.edu/cpr/research/rtc2004/

Principal Investigator: Marianne Farkas, ScD; E. Sally Rogers, ScD, 617/353-3549

Public Contact: E. Sally Rogers, ScD, 617/353-3549; Fax: 617/353-7700

Project Number: H133B990023

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 99 $749,990; FY 00 $749,990; FY 01 $350,000; FY 02 $749,990; FY 03

$749,990

Other funding: FY 00 $300,000 (Center for Mental Health Services); FY 01 $300,000 (CMHS); FY

03 $300,000 (CMHS)

Abstract: This Center studies the recovery and rehabilitation of people with long-term mental illness

and the individual and environmental factors that promote recovery. It is linked by its programmatic

focus on three specific core areas of, recovery dimensions, rehabilitation interventions, and alternative

interventions; is strengthened by the use of the appropriate research strategies; and is assisted by a

vigorous program of training, technical assistance, and dissemination activities designed to maximize

the impact of the center at all levels in the field of psychiatric rehabilitation. The research projects are

designed to have an impact on the field at the personnel, program, and system levels. Research projects

use a participatory research process with significant input from consumers and other stakeholders, and

culminate in dissemination, training, or technical assistance activities to maximize the impact of the

research program. The Training, Dissemination, and Technical Assistance (TDTA) projects are designed to provide exposure, experience, and expertise to knowledge transfer. The TDTA component

produces new technologies in recovery and rehabilitation, and increases the likelihood that researchers,

service providers, and others use the cumulative knowledge developed by this Center.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-9

Rehabilitation Research and Training Centers (RRTCs)

Minnesota

Research and Training Center on Community Living (RTC/CL)

University of Minnesota

The Institute on Community Integration

204 Pattee Hall, 150 Pillsbury Drive, SE

Minneapolis, MN 55455

lakin001@umn.edu

rtc.umn.edu

Principal Investigator: Charlie Lakin, PhD, 612/624-5005

Public Contact: Sheryl Larson, PhD, 612/625-6024; Fax: 612/625-6619

Project Number: H133B031116

Start Date: October 1, 2003

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 03 $750,000

Other funding: FY 04 $300,000 (Administration on Developmental Disabilities), $70,000 (Centers

for Medicare and Medicaid Services), $295,000 (NIDRR Field Initiated Projects), $300,000 (Kansas

Planning Council on Developmental Disabilities), $120,000 (Centers for Disease Control and Prevention, Center on Birth Defects and Developmental Disabilities), $145,000 (College of Direct Support

web-based training program), $30,000 (Partners in Community Supports) $20,000 (NIDRR via

subcontract with National Resource Center on Supported Living), $60,000 (University of Minnesota)

Abstract: The Center conducts research, training, technical assistance, and dissemination to enhance

inclusion and self-determination of citizens with intellectual and developmental disabilities (ID/DD).

The research program has six outcome areas: policy studies and data bases supports for full participation self-determination and consumer-control workforce development and quality assessment and

improvement systems. The research program within the priority areas includes: (1) research syntheses

of the state of knowledge and practice; (2) secondary analyses of high quality, topically relevant

national and state data sets; (3) case studies of best practices; (4) evaluation of demonstration efforts to

improve policy and practice; (5) survey and interview studies of critical issues; and (6) group process

studies with key constituencies. An integrated intramural training program addresses the development

of skilled disability researchers and community service professionals. Outreach training programs

provide training and technical assistance to agencies and individuals providing support to people with

ID/DD, including members of their families. The College of Direct Support provides on-line interactive multi media training to thousands of direct support professionals across the US. Outreach programs include conferences and workshops for a wide variety of national, regional, and state audiences,

a state-of-the-art conference, annual “Reinventing Quality” conference, and intensive technical assistance with community organizations, including advocacy and self-advocacy organizations. The Center

disseminates practical information to targeted audiences through its internal publication program that

includes: IMPACT, Policy Research Brief, DD Data Brief, and Frontline Initiative. It maintains high

standards for scholarly productivity and publication through books, journal articles and technical

reports. About 15,000 people visit Center websites each month for access to view publications or other

information on best practices in person-centered services (“QualityMall.org”), national statistics on

services and expenditures, the direct support workforce, and other contemporary topics.
4-10 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Independent Living

Management (RRTC- ILM)

The Western New York Independent Living Project, Inc.

3108 Main Street

Buffalo, NY 14214-1384

dusiak@wnyilp.org

www.rrtcilm.org

Principal Investigator: Douglas J. Usiak

Public Contact: John Moffat, 716/836-0822; Fax: 716/835-3967

Project Number: H133B000002

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $600,000; FY 01 $600,000; FY 02 $600,000; FY 03 $600,000

Abstract: To help Centers for Independent Living (CIL) become integrated more fully with their

communities, this project identifies and applies best practices, finding examples from both inside and

outside the CIL network. The work is conducted embracing, supporting, and emulating the principles

of the independent living philosophy, which encompass consumer control, self-help, advocacy, peer

relationships, peer role models, and empowerment. The seven projects of the RRTC-ILM are: (1)

developing a database of CIL profiles, aggregating the information required to develop and implement

a set of related research, training, and dissemination projects whose best practices help to build a secure

economic foundation for CILs; (2) designing and testing options for generating funding from alternative sources, through collaborations with others that include building business development strategies

and analyzing the policy-related and programmatic consequences of various funding options (such as

those independent of public financing); (3) identifying best practices and developing test programs that

allow CILs to expand their services to youth with disabilities and their families, including those from

diverse cultural backgrounds, and to interface with existing educational and transitional programs to

prepare children and youth for independent living; (4) modifying and testing management models of

other successful community-based organizations so those strategies benefit CILs; (5) investigating CIL

and VR agency policies related to collaborations, and designing strategies for innovative partnerships

that promote employment outcomes for individuals with disabilities; (6) coordinating activities with the

Rehabilitation Services Administration and providing instruments, curricula, ethodologies, resource

guides, and research findings; and (7) providing training and information for CIL policy-makers,

administrators, and advocates on the RRTC’s research findings and identified strategies.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-11

Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on the Community

Integration of Individuals with Traumatic Brain Injury

Mount Sinai School of Medicine

Research and Training Center

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

www.mssm.edu/tbinet

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372 (V); 212/241-8978 (TTY); Fax: 212/348-5901

Project Number: H133B980013

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000; FY 01 $800,000; FY 02

$800,000; FY 03 (No-cost extension through 9/30/2004)

Abstract: The RTC is a product of participatory action research, emphasizing the empowerment of

individuals with TBI both in setting and carrying out its research agenda, and in implementing a

program aimed at strengthening the voices of individuals with TBI. The program includes four evaluation projects and three basic research projects: (1) evaluating a measure of community integration that

assesses both the individual’s level of participation and his or her experience of daily activity; (2)

evaluating an innovative approach to person-centered, community-based VR; (3) evaluating a peer

mentoring program; (4) screening for TBI in individuals identified with substance abuse disorders; (5)

researching longitudinal studies of the emergence and resolution of behavioral/emotional challenges

post-TBI; (6) researching factors associated with healthy aging after injury; and (7) validating a brain

injury screening approach used in school children. The RRTC is also active in providing technical

assistance and in training and dissemination activities.
4-12 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center to Improve Services for

Children with Serious Emotional and Behavioral Disabilities and Their

Families

Portland State University

Regional Research Institute

School of Social Work

P.O. Box 751

Portland, OR 97207-0751

gordonL@pdx.edu

www.rtc.pdx.edu

Principal Investigator: Barbara Friesen, PhD

Public Contact: Lynn Gordon, Associate Director and Conference Coordinator, 503/725-8118; Fax:

503/725-4180

Project Number: H133B990025

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 99 $725,000; FY 00 $725,000; FY 01 $300,000; FY 02 $725,000; FY 03

$725,000

Other funding: FY 99 $150,000 (Center for Mental Health Services (CMHS)); FY 00 $155,000

(CMHS); FY 01 $570,000 (CMHS); FY 03 $500,000 (CMHS)

Abstract: This project conducts an integrated set of research, training, and technical activities to: (1)

develop and evaluate service delivery models for children with an emotional disturbance and their

families, including family-centered and culturally sensitive services; (2) define and evaluate the formal

and informal components of family support and identify successful family support interventions; (3)

identify and evaluate early intervention strategies; and (4) identify, develop, and evaluate communication skills to enable families and service providers to communicate effectively with each other. Research issues include caregivers and employment, inclusive care, early intervention, education, service

delivery, training, and mentoring.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-13

Rehabilitation Research and Training Centers (RRTCs)

Pennsylvania

Rehabilitation Research and Training Center on Community

Integration of People with Psychiatric Disabilities

University of Pennsylvania

3535 Market Street, 3rd Floor

Philadelphia, PA 19104

salzer@mail.med.upenn.edu

Principal Investigator: Mark Salzer, PhD

Public Contact: 215/662-2886; Fax: 215/349-8715

Project Number: H133B031109

Start Date: October 1, 2003

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $749,212

Abstract: The goal of this Center is to insure that people with psychiatric disabilities not only move

from institutional care to more integrated settings but also are free to choose to participate in a wide

range of roles in their communities. The Center’s five year mission focuses on three core areas: (1)

Factors Associated with Community Integration develops a coherent conceptual framework for community integration and identifies key factors, intervention models, and appropriate instrumentation and

research methodologies; (2) Policies Associated with Community Integration identifies, develops, and

assesses the effectiveness of a range of public policies and system strategies promoting community

integration and engage key stakeholders in learning about and utilizing the Center’s findings; and (3)

Intervention Supports that Assist Community Integration identifies, develops, and assesses the effectiveness of support service interventions promoting community integration, and provides training,

technical assistance, and dissemination based on those initiatives to change behaviors and practices of

key stakeholders. This Center capitalizes upon the longstanding history of collaboration among three

Philadelphia- based central partners: The University of Pennsylvania, the peer-operated Mental Health

Association of Southeastern Pennsylvania, and The Matrix Center at Horizon House, Inc.
4-14 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Texas

Rehabilitation and Training Center on Community Integration in

Persons With TBI

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

2455 South Braeswood

Houston, TX 77030

asander@bcm.tmc.edu

Principal Investigator: Angelle M. Sander, MD; Margaret Struchen, PhD

Public Contact: 713/383-5644 (Sander); 713/383-5645 (Struchen)

Project Number: H133B031117

Start Date: November 1, 2003

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $799,960

Abstract: The research program of this project includes: development and evaluation of a social

network mentoring program; an investigation of racial/ethnic differences in acceptance of disability,

community integration needs, barriers, and supports; a distance learning program to train family members in rural areas as paraprofessionals; assessment of employers’ attitudes toward persons with TBI

and a pilot educational intervention to reduce attitudinal barriers in the workplace; a randomized

clinical trial to assess the effectiveness of a brief substance abuse intervention; a qualitative exploration

of intimacy following TBI; and a study investigating the role of social communication abilities and

environmental factors on social integration. Training projects include: a National Information, Educational Resources, Dissemination, and Technical Assistance Center for the Community Integration of

Individuals With TBI; development of educational materials for increasing community awareness of

TBI and reducing attitudinal barriers; adoption of a social action network program from disability

studies for improving positive identity; partnering with artists in the community to implement a Center

for Creative Expressions for persons with TBI; training of community healthcare professionals in the

community integration needs of persons with TBI; a rehabilitation fellowship in community integration

of persons with TBI; and a state-of-the-science conference and book on community integration.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-15

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

District of Columbia

Leadership Development: A New Generation of Effective Leadership

Howard University

2900 Van Ness Street Northwest

Holy Cross Hall, Suite 100

Washington, DC 20008

swalker@howard.edu

Principal Investigator: Sylvia Walker, EdD

Public Contact: 202/806-8086; Fax: 202/806-8148

Project Number: H133A990020

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 99 $175,000; FY 00 $175,000; FY 01 $175,000; FY 02 $65,000; FY 03

$175,000

Other funding: FY 02 $110,000 (Rehabilitation Services Administration); FY 03 $110,000 (RSA),

$65,000 (NIDRR)

Abstract: This project improves services provided under the Rehabilitation Act as amended, especially services provided to individuals from minority populations. The goal of the project is to increase

the leadership competencies of individuals with disabilities from underserved and underrepresented

communities, thereby maximizing the full inclusion and integration of people with disabilities from

underserved and underrepresented groups into society, employment, independent living, family support, and economic and social self-sufficiency. All activities are focused on promoting and ensuring

full participation of members of groups who have traditionally been underserved by the VR system.

Community-based rehabilitation, disability, and educational organizations and entities work as collaborators to the project in nominating people from underserved and underrepresented groups to participate

in the training and to provide assistance to the participants in the implementation of a follow-up plan of

action. Individuals participate in a leadership development training program that provides a broad

range of technical assistance, consultation, and support services to them during implementation of their

individual action plans.
4-16 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Disability and Rehabilitation Research Projects

Iowa

Asset Accumulation And Tax Policy Project

University of Iowa College of Law

Law Health Policy and Disability Center

100 Gilmore Hall

Iowa City, IA 52242

peter-blanck@uiowa.edu

www.its.uiowa.edu/law/lhpdc/rrtc/index.html

Principal Investigator: Peter D. Blanck, PhD, JD, 319/335-9043

Public Contact: Michael Morris, JD; James Schmeling, JD, 202/521-2930 (Morris); 319/335-8458

(Schmeling); Fax: 319/335-9764

Project Number: H133A031732

Start Date: November 1, 2003

Length: 60 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 03 $299,991

Abstract: This project develops and disseminates a new and comprehensive body of knowledge to

multiple target audiences nationwide to improve the economic independence, social empowerment,

and community integration of persons with disabilities. Researchers examine systematically the relationship between tax policy and asset accumulation for persons with disabilities, and resultant improvements in economic and community integration. The project investigates the impact of multiple intervention strategies—including financial education, matched savings accounts, expanded financial

services, and increased use of state and Federal tax incentives for asset and community economic

development—in six states and ten pilot demonstration sites nationwide on youth in transition and

adults with disabilities. This project is a collaborative effort of The Law, Health Policy, and Disability

Center at the University of Iowa College of Law, Southern New Hampshire University School of

Community Economic Development, the National Federation of Community Development Credit

Unions, the World Institute on Disability, and the National Cooperative Bank Development Corporation.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-17

Disability and Rehabilitation Research Projects

Kansas

The Impact of Interventions on Self-Determination and Adult

Outcomes

University of Kansas

Kansas University Center on Developmental Disabilities/Beach Center on Disability

1200 Sunnyside Avenue, Room 3136

Lawrence, KS 66045-7555

wehmeyer@ku.edu

www.beachcenter.org

Principal Investigator: Michael Wehmeyer, PhD (University of Kansas); Laurie Powers, PhD

(Oregon Health Sciences University), 785/864-7605

Public Contact: 785/864-0723; Fax: 785/864-3458

Project Number: H133A031727

Start Date: October 1, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $299,313

Abstract: This project conducts three semi-longitudinal, national studies examining the impact of

interventions to promote the self-determination of students with high incidence and low incidence

disabilities, and students who are at-risk for poor adult outcomes on student self-determination, adult

outcomes, and quality of life. In all three studies, participants receive instruction for several years (with

annual measurements) and adult outcomes are measured during the next two years, post-high school.

The first study focuses on students with learning disabilities, mild intellectual disabilities, and emotional/behavioral disorders. The second study focuses on students with moderate to severe intellectual

disabilities, multiple disabilities, and severe autism. The third study focuses on students with disabilities

from foster systems or juvenile justice system.
4-18 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Disability and Rehabilitation Research Projects

Oregon

Identification and Reporting of Violence By People with Disabilities

Oregon Health and Science University

Center on Self-Determination

3608 Southeast Powell Building

Portland, OR 97202

powersl@ohsu.edu; mcneffe@ohsu.edu

selfdetermination.ohsu.org

Principal Investigator: Laurie Powers, PhD, 503/232-9154, ext. 104

Public Contact: Elizabeth McNeff, MPA, MHA, 503/232-9154, ext. 150; Fax: 503/232- 6423

Project Number: H133A031724

Start Date: December 1, 2003

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $300,000

Abstract: The purpose of this project is to reduce the prevalence of violence against people with

disabilities. People with disabilities are at substantially higher risk for violence, abuse, and criminal

victimization than the general population. The identification and reporting of violence typically involves individuals’ self- identifying as victims and accessing safety and reporting information and

resources, as well as the availability of sensitive and accessible reporting methods. The goal of this

project is to improve the identification, reporting, and response to violence against persons with disabilities living in the community by: (1) validating the efficacy of a culturally sensitive approach to

promote violence screening, safety behaviors, disclosure and reporting by women with disabilities; (2)

increasing knowledge of the extent to which current crime reporting methods incorporate disability

status and accommodation information, and the barriers faced by police jurisdictions across the nation

in documenting and facilitating crime reporting by persons with disabilities; and (3) identifying practices and policies that promotes and support violence disclosure and reporting by individuals with

disabilities.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-19

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

California

Occupational Therapy Evaluation and Training Module to Guide

Practice with Parents with Physical Disabilities

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

TLG@lookingglass.org

www.lookingglass.org

Principal Investigator: Megan Kirshbaum, PhD, 510/848-1112

Public Contact: 800/644-2666 (V); 800/804-1616 (TTY); Fax: 510/848-4445

Project Number: H133G010054

Start Date: November 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000

Abstract: This project develops an evaluation tool and an evaluation training module that helps

occupational therapy students and clinicians in their work with parents with physical disabilities, a

currently underserved population. The training module, which consists of a clinical evaluation tool, a

manual, and a videotape, guides clinical reasoning and the ability to provide appropriate recommendations and options that take into consideration the baby care roles and adapted baby care equipment

needs of parents with physical disabilities who care for (or want to care for) their children. The training

module provides a guide to evaluation of baby care needs and intervention in a variety of settings.

Parents who have physical disabilities who also have children birth to age 3 inform production, piloting, and field-testing. Further, occupational therapy expertise is needed nationally regarding AT related

to parenting. This is especially true as regards evaluation of parents with disabilities whose capability is

being questioned, for example in custody, child protection, or adoption situations. This module paves

the way for more inclusion of occupational therapist expertise in these evaluation circumstances.
4-20 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Field-Initiated Projects (FIPs)

California

Total Community Immersion Model for Postsecondary-Age Students

with Significant Disabilities: An Outcome-Based Approach to

Transition

San Francisco State University

Department of Special Education

1600 Holloway Avenue

San Francisco, CA 94132

ncerto@sfsu.edu

Principal Investigator: Nicholas Certo, PhD

Public Contact: 415/338-2503; Fax: 415/338-0566

Project Number: H133G020184

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Abstract: This project develops, implements, and evaluates a Total Community Immersion Model for

transitioning students who are 19 and 20 years old from several metropolitan school districts in San

Francisco Bay Area. The Oakland Unified School District, and other Bay Area School Districts in

collaboration with San Francisco State University, have spent the last three years establishing the

Transition Service Integration Model, which has produced a seamless transition to adulthood by

integrating services with adult service providers functioning as receiving agencies and the rehabilitation

and developmental disability systems at the point of transition. However, that model focuses exclusively on the needs of pending graduates, that is, 21- year-old students during their last year of school,

and could benefit from receiving students with well-developed preferences for community living and

employment. A new model, developed through this research, eliminates the use of a fixed school site

and develops initial work and non-work activities that facilitate inclusion into each individual’s neighborhood, as well as other communities in Oakland and the metropolitan Bay Area.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-21

Field-Initiated Projects (FIPs)

Florida

RAICES/Promotoras

University of South Florida

Louis de la Parte Florida Mental Health Institute

13301 Bruce B. Downs Avenue

Tampa, FL 33612

callejas@fmhi.usf.edu

cfs.fmhi.usf.edu/cfsnews/2003news/RAICES.htm

Principal Investigator: Mario Hernandez, PhD, 813/974-4651

Public Contact: Linda M. Callejas, 813/974-4651; Fax: 813/974-7563

Project Number: H133G030014

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $149,992

Abstract: RAICES (Resources, Advocacy, Integration, Collaboration, Empowerment, and Services)

develops and tests a method of service provision that integrates a model known as Promotoras with a

locally funded school-linked case management approach known as the Family and School Support

Team (FASST). FASST provides school and in-home services for children and their families funded

through the Children’s Board of Hillsborough County. The RAICES project targets at-risk limited

English speaking and Spanish monolingual Latino children or those with serious emotional disturbance

enrolled in grades K-5 and their families in rural east and south Hillsborough County Florida. The

project also targets service providers and school personnel that serve Latino families. “Raices,” or

“roots,” symbolizes building healthy school and family ties upon the foundations present within the

family and community. Promotoras, or community educators, are community members who use their

knowledge of local resources and their neighborhood’s health and social issues to promote healthy

living and help community residents access needed health and social services. Case management

programs such as FASST face challenges in identifying, mobilizing, and sustaining informal resources

to support families. The Promotoras model offers a vehicle to make needed modification of local

services through development of more culturally competent methods for linking and engaging Latino

families with FASST and schools.
4-22 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Field-Initiated Projects (FIPs)

Illinois

University of Illinois at Chicago Mental Health Services Research

Program Medication Adherence Program Study (UIC-MAPS)

University of Illinois at Chicago

104 South Michigan Avenue, Suite 900

Chicago, IL 60603-5902

razzano@psych.uic.edu

www.psych.uic.edu/mhsrp

Principal Investigator: Lisa A. Razzano, PhD

Public Contact: 312/422-8180, ext. 20; Fax: 312/422-0740

Project Number: H133G010093

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000

Abstract: This project examines the effects of a multifaceted curriculum designed to improve adherence to medication and treatment regimens, explore attitudes regarding physical health and treatment

planning, and improve the ability of participants to return to work. The UIC-MAPS intervention

comprises several components, including: (1) developing an educational workshop consisting of three

one-hour modules regarding health information, use of anti-retroviral medications, treatment planning,

maintaining health, detecting early symptoms of illness progression, and other topics; (2) developing

individualized medication plans; (3) meeting with clients and their identified sources of social support

to address medication and services issues; and (4) hosting monthly peer-led support groups on medication adherence, attitudes toward health and medication regimens, and issues related to health, wellbeing, and quality of life. The project includes a comprehensive evaluation designed to make significant contributions to the state-of-the-science literature regarding employment and adherence among

people living with HIV/AIDS. In addition, information from peer support group leaders regarding their

role(s) in working with other individuals living with HIV/AIDS is examined. The Mental Health

Services Research Program at the University of Illinois at Chicago is collaborating with Chicago

House, a community-based HIV/AIDS services organization on this project.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-23

Field-Initiated Projects (FIPs)

Illinois

Moving Out of the Nursing Home and to the Community: Examining

and Effecting Social Change

University of Illinois at Chicago

Department of Occupational Therapy

Department of Disability and Human Development

1919 West Taylor, M/C 811

Chicago, IL 60612-7250

hammel@uic.edu

www.uic.edu/ahs/OT/research.htm

Principal Investigator: Joy Hammel

Public Contact: 312/996-3513; Fax: 312/413-0256

Project Number: H133G010033

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $149,989; FY 02 $149,993; FY 03 $149,981

Abstract: This project develops, evaluates, and disseminates a social action and networking program

with people with disabilities who are transitioning from nursing homes to communities of their choice.

The majority of community reintegration program research has focused on individual functional skill

development as delivered by professionals. This new social action program, based on disability studies

research and disability narratives, targets four major unmet needs for: (1) sustained networking with

peers, mentors, and activists who have disabilities who can share experiences and strategies; (2) joining

meaningful social reference groups, especially those in which disability identity, pride, community

membership, and collective activism are valued and modeled; (3) using information technologies, such

as computers and the Internet, to gain knowledge, socialize, and network with identified communities

of choice; and (4) gaining access to consultative services and resources to access these technologies

and the community environment over time. The project uses a participatory action research collaboration approach to create and research the impact of this social action program on long-term community

living, participation, quality of life, social networking, and individual and collective identity development processes and outcomes. The project involves a collaborative partnership to effect social change

among two Centers for Independent Living, two departments within the Joint Doctoral Program in

Disability Studies at the University of Illinois/Chicago (UIC), the Center on Disability Research at

UIC, and state agencies and disability organizations involved in community reintegration and resource

allocation to support community living.
4-24 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Field-Initiated Projects (FIPs)

Illinois

Integration at Home: Strengthening Family Relationships of Adults

with Disabilities

University of Illinois at Chicago

1640 West Roosevelt Road, M/C 626 Room 236

Chicago, IL 60608-6904

cg16@uic.edu

Principal Investigator: Carol J. Gill, PhD

Public Contact: 312/355-0550 (V); 312/996-4664 (TTY); Fax: 312/996-7743

Project Number: H133G020146

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $149,957; FY 03 $149,976

Abstract: This study investigates the family relationship issues of adults with physical or mobility

disabilities and adults with chronic fatigue syndrome. Phase I involves focus group interviews with

adults with disabilities for an open exploration of family relationship issues. Phase II involves in-depth

case studies of families experiencing disability who exemplify positive family integration. Phase III

involves a randomized control group study to test the impact of a family “intervention” based on the

social model of disability.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-25

Field-Initiated Projects (FIPs)

Illinois

Enabling Self-Determination for People Living with AIDS

University of Illinois at Chicago

Department of Occupational Therapy

M/C 811, 1919 West Taylor Street

Chicago, IL 60612

kielhfnr@uic.edu

Principal Investigator: Gary Kielhofner, PhD; Brent Braveman, PhD, 312/996-4973 (Keilhofner);

312/355-2656 (Braveman)

Public Contact: Fax: 312/413-0256

Project Number: H133G020217

Start Date: January 1, 2003

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $149,032; FY 03 $149,337

Abstract: This project implements and studies a model program of peer- facilitated, empowermentoriented services for people with AIDS within five supportive living facilities. The facility-based

program provides individualized and group services that are tailored to each client’s needs and provides clients with necessary environmental supports. The program also empowers clients to access

additional resources and services that support their self-determination. This model program, Enabling

Self-Determination, is initially offered to clients in three supportive living facilities. Researchers study:

(1) the independent living, employment, and community participation outcomes of the model program,

and (2) the three facilities’ efforts to sustain the program. This condition is compared to a control group

comprised of individuals from two other facilities who receive basic educational services. Participatory

research methods are used to identify potential obstacles and solutions to program implementation and

efficacy, and to evaluate how the services impact upon and are viewed by the clients. Researchers

work closely with the two control group facilities to build their capacity to implement the model

program. In this way, the five transitional living facilities in Chicago that serve persons with AIDS are

empowered to sustain the Enabling Self-Determination program. Finally, the project creates extensive

resources for program replication and vigorously disseminates the model program so that communitybased supportive living facilities can replicate the program nationwide.
4-26 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Field-Initiated Projects (FIPs)

Indiana

Integrating Assertive Community Treatment (ACT) and Illness

Management and Recovery (IMR) for Clients with Severe Mental

Illness (SMI)

Indiana University

Department of Psychology/ACT Center

402 North Blackford Street, LD 124

Indianapolis, IN 46202

mpsalyer@iupui.edu

psych.iupui.edu/ACTCenter

Principal Investigator: Michelle P. Salyers, PhD

Public Contact: 317/274-2904; Fax: 317/274-6756

Project Number: H133G030106

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $149,458

Abstract: This project targets the subgroup of 20 percent of consumers with severe mental illness

identified with the most severe disabilities, that is, the subgroup most often excluded from rehabilitation

services and mental health treatment. The project involves: (1) the systematic integration and highfidelity implementation of two evidence-based practices for consumers with severe mental illness:

assertive community treatment and illness management and recovery; (2) enhancing integration by

employing a consumer specialist on treatment teams in a well-defined role; and (3) providing the first

empirical test of a comprehensive package of techniques designed to help consumers learn to manage

their own illness and foster recovery. Outcome measures include achievement of recovery goals, such

as competitive employment and independent living, as well as indicators of illness management, such

as prevention of hospitalization.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-27

Field-Initiated Projects (FIPs)

Kansas

Independent Living for People with Psychiatric Disabilities: Using

Contextual Cues to Remove Environmental Barriers

University of Kansas Medical Center

Occupational Therapy Education

3033 Robinson Building

3901 Rainbow Boulevard

Kansas City, KS 66160-7602

tbrown@kumc.edu

www2.kumc.edu/pdrp

Principal Investigator: Catana Brown, PhD

Public Contact: 913/588-7195; Fax: 913/588-4568

Project Number: H133G000152

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 00 $148,765; FY 01 $136,107; FY 02 $148,672; FY 03 (No-cost extension

through 4/30/2004)

Abstract: This project examines an intervention that reduces environmental barriers by teaching

contextual cues. The grocery store, an exemplar of a complex community-based environment, is the

focus, and grocery shopping is the designated skill. The hypotheses tests the effectiveness of the

intervention in improving knowledge, performance, and application of grocery shopping skills, and the

relationship of cognition to skill acquisition. Individuals with psychiatric disabilities from five community-based sites are randomly assigned to either the grocery shopping intervention or a wait-list control

group. Outcome measures address all levels of skill acquisition: knowledge, performance (including

generalizability and maintenance), and application of grocery shopping skills. In addition, measures of

basic cognitive processes and executive functioning determine whether cognition predicts skill acquisition. Consumer collaborators are included in all aspects of the program. The findings provide direction

for enhancing this and other skills training interventions.
4-28 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Field-Initiated Projects (FIPs)

Louisiana

Louisiana Community Housing Advocacy Network (LA-CHAN)

Louisiana State University

Health Science Center

LSU HSC-HCD #119

1100 Florida Avenue

New Orleans, LA 70119

nrober@lsuhsc.edu

www.hdc.lsuhsc.edu

Principal Investigator: Philip Wilson, PhD, 504/942-8240

Public Contact: Nancy Robertson, 504/942-7898; Fax: 504/942-5908

Project Number: H133G020211

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Abstract: The goal of this project is to establish community Housing Advocacy Networks in several

areas in Louisiana. The purpose of the advocacy networks is to provide a foundation for collaboration

among persons with disabilities, disability service providers, and housing professionals that will: (1)

develop local housing policies that are responsive to the housing needs of persons with disabilities, (2)

ensure communities access all available national housing resources for persons with disabilities, and (3)

establish local programs and service that meet the unique housing needs of persons with disabilities.

Anticipated project outcomes include: (1) increased availability of mainstream housing vouchers, (2)

increased participation of persons with disabilities in the local Consolidated Planning Process, and (3)

the successful transition of individuals from restrictive residential settings to community-based housing

options. This project also recruits, hires, and trains individuals with significant disabilities to serve as

housing advocates and play an integral role in ensuring individuals with disabilities are active participants in the networks.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-29

Field-Initiated Projects (FIPs)

Michigan

Identifying Social Integration Needs During Transition to Adulthood

Following Traumatic Brain Injury

University of Michigan

Department of Physical Medicine and Rehabilitation

Box 0718

1500 East Medical Center Drive

Ann Arbor, MI 48109-0718

sethaw@umich.edu

Principal Investigator: Seth Warschausky, PhD

Public Contact: Joan Zaccagnini, 734/936-7052; Fax: 734/936-7048

Project Number: H133G000038

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $148,363; FY 01 $136,590; FY 02 $143,034; FY 03 (No-cost extension

through 2/29/2004)

Abstract: This study identifies specific social rehabilitation and integration needs of persons with TBI.

Social functioning is a core domain of quality-of-life, a key predictor of well-being, and is critical to

the development of independence. Earlier work has demonstrated that persons with TBI are at risk for

social isolation and impaired social problem-solving (SPS) skills including the ability to be assertive in

achieving desired social outcomes in school, work, and other settings. SPS skills have been shown to

be powerful predictors of social success and integration in noninjured individuals. The specific aims of

this study are to: (1) examine SPS skills as key predictors of social integration and quality of life in a

sample of young adults with TBI; (2) examine the mediating role of SPS in the relationships between

age of onset of TBI and outcome variables; (3) examine predictors of SPS following TBI; and (4)

examine SPS following childhood TBI as predictors of social integration and subjective well-being in

adulthood.
4-30 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Field-Initiated Projects (FIPs)

Michigan

Stress and Coping over the Life Course: A Perspective on Women with

Spinal Cord Injury

University of Michigan

Physical Medicine and Rehabilitation

Rehabilitation Psychology

D4100 MPB

1500 East Medical Center Drive

Ann Arbor, MI 48109-0718

dgtate@umich.edu

www.med.umich.edu/pmr/

Principal Investigator: Denise G. Tate, PhD

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133G020060

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $149,995; FY 03 $149,999

Abstract: This investigation describes the challenges to independent living faced by women with SCI

and the strategies they use to manage the stresses of everyday life. The ratio of men to women who

sustain SCI is approximately four to one, with current national prevalence of women estimated to be

36,900. Much of the research on SCI has focused on men and may not reflect the experiences of

women with SCI. Even more than their male counterparts, women with SCI endure multiple minority

status, poverty, lack of education, job discrimination, and restricted choices, and are often burdened by

extra care-taking responsibilities, all of which may elevate their risk for stress- related disorders. This

study: (1) documents, from a contextual life perspective, the ways women with SCI perceive and

respond to stressful life events; (2) explores, in depth, effective and ineffective ways of coping; and (3)

assesses the impact these strategies have on quality of life.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-31

Field-Initiated Projects (FIPs)

Michigan

Community Participation After Spinal Cord Injury: Idioms of Beliefs

and Behaviors

Wayne State University

Institute of Gerontology

87 East Ferry Street

Knapp Building, Room 231

Detroit, MI 48202

c.lysack@wayne.edu

Principal Investigator: Catherine Lysack, PhD

Public Contact: 313/577-2297; Fax: 313/875-0127

Project Number: H133G020151

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 02 $149,959; FY 03 $149,974

Abstract: This study identifies and describes the self-defined forms of community and the modes of

community participation found meaningful to persons living with SCI. The five specific aims are to:

(1) discover and describe the self-defined forms of community that people with SCI envision and

pursue in daily life; (2) identify and describe the cultural and individual idioms of beliefs and behaviors

by which people with SCI create a sense of identification and participate in personally valued communities; (3) identify the barriers to participation in desired communities, and strategies and techniques (if

any) that persons with SCI use to overcome these barriers; (4) compare and contrast persons in two

groups (new onset SCI and more longstanding duration) in terms of the forms of community, idioms of

identification, and strategies used to overcome barriers and achieve meaningful community participation; and (5) evaluate preliminary qualitative hypotheses about the nature and modes of community

participation actually envisioned by persons with SCI themselves.
4-32 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Field-Initiated Projects (FIPs)

Minnesota

National Training Institute for Frontline Supervisors (NTIFF)

University of Minnesota

Institute on Community Integration

214B Pattee Hall, 150 Pillsbury Drive, SE

Minneapolis, MN 55455

larso072@umn.edu

rtc.umn.edu/wddsp

Principal Investigator: Sheryl Larson, PhD, 612/624-6024

Public Contact: Nancy McCulloh, 612/626-7765; Fax: 612/625-6619

Project Number: H133G030058

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $150,000

Abstract: This project refines, tests, and delivers a national train-the- trainer and technical assistance

model to assist community organizations that provide supports and services to persons with developmental and other severe disabilities to recruit, retain, and train direct support and frontline supervisor

staff members. The model includes: (1) assisting organizations to assess their recruitment and retention

challenges; (2) providing web-based training on recruitment and retention strategies; (3) conducting 2

intensive train the trainer institutes for 10-15 organization representatives; (4) supporting organizational

representatives to provide training to 70-100 frontline supervisors; (5) providing on-site as well as

remote technical assistance support and training to organizational representatives; (6) supporting

technical assistance efforts by organizational representatives for frontline supervisors; (7) supporting

ongoing follow-up measurement to assess the effectiveness of interventions and to guide future intervention work; and (8) developing project products and reports to share the project outcomes with

policy makers, provider organizations, and other interested persons.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-33

Field-Initiated Projects (FIPs)

Missouri

PeerLink: Empowering Persons with Disabilities to Manage Their Own

Information

University of Missouri

Department of Health Psychology, DC046.46

1 Hospital Drive

Columbia, MO 65211

schoppl@health.missouri.edu

www.telerehab.net

Principal Investigator: Laura Schopp, PhD

Public Contact: 573/882-8847; Fax: 573/884-4540

Project Number: H133G020065

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: William V. Schutz, PhD, MSW, MPH

NIDRR Funding: FY 02 $145,379; FY 03 $145,911

Abstract: This project develops an information management system that allows users to share personal

and local community resource information instantaneously and selectively, according to their own

specifications. The PeerLink team provides expertise in disability issues, informatics, and adaptive

computing. PeerLink creates information innovation in three major goal areas: (1) peer-to-peer information transfer model: developing, seeding, and implementing a highly disseminated, agile information

system to promote effective service integration by enabling efficient consumer-directed information

transfer; (2) knowledge management: converting implicit local resource information held by knowledgeable community members with disabilities in order to make vetted information more broadly

available to other community members when and where they need it; and (3) graphic representation:

capitalizing on an existing information dissemination user interface to allow access to geographicallybased visualization of data for local disability resources.
4-34 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Field-Initiated Projects (FIPs)

New Hampshire

Survey of Home Ownership Nationwide

University of New Hampshire

Institute on Disability

7 Leavitt Lane, Suite 101

Durham, NH 03824

david.hagner@unh.edu

www.alliance.unh.edu

Principal Investigator: David Hagner, PhD

Public Contact: 603/862-4320; Fax: 603/862-0556

Project Number: H133G000034

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 00 $149,999; FY 01 $149,999; FY 02 $150,000; FY 03 (No-cost extension

through 12/31/2003)

Abstract: This project systematically investigates the quality-of-life outcomes of home ownership for

people with severe disabilities, and the personal, service system, financial system, and support network

variables associated with achieving and maintaining successful home ownership. Five interrelated

studies are conducted: (1) a home ownership outcome study, using in-person structured interviews

across six states, conducted by individuals with disabilities, in collaboration with the Temple University Institute on Disabilities, to examine the effect of home ownership on quality-of-life and quality-ofservice provision; (2) a study of facilitating and inhibiting factors in home ownership, based on telephone interviews with disability service system personnel, financial personnel, and informal support

persons assisting the successful and unsuccessful home seekers identified in the outcome study above,

in collaboration with the UNH Center for Survey Research; (3) an investigation of the predictors of

mortgage company underwriting decisions to test the effect of differences in disability, assistance, and

income sources on mortgage lending; (4) an intensive case study of selected home owners to examine

the personal meaning of home ownership and the process of overcoming barriers; and (5) a followalong study of the variables associated with long-term success by successful home owners.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-35

Field-Initiated Projects (FIPs)

New York

Evaluating Independent Living Outcomes for Blind and Visually

Impaired Older People: Development of a Nationally Standardized

Minimum Dataset (NSMD)

American Foundation for the Blind

11 Penn Plaza, Suite 300

New York, NY 10001

corinne@afb.net

www.afb.org

Principal Investigator: Corinne Kirchner, PhD; Alberta L. Orr, MSW

Public Contact: 212/502-7640; Fax: 212/502-7773

Project Number: H133G010183

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000

Abstract: This project develops and pilot tests a Nationally Standardized Minimum Dataset (NSMD),

through which research can be conducted on the outcomes of services for older persons with visual

impairments. This population has traditionally been underserved by public programs including the VR

system and the aging network. The NSMD is piloted in several agencies throughout the country and

includes: (1) pre- service consumer data, (2) a post-service consumer profile, (3) a functional outcomes

assessment, and (4) a consumer satisfaction and perceived outcome survey. Public agency administrators and staff are the primary audience. Secondary target audiences are private agencies for the blind,

centers for independent living, and consumers.
4-36 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Field-Initiated Projects (FIPs)

New York

A Longitudinal Study of Psychosocial Outcomes and Subjective Quality

of Life Many Years After Traumatic Brain Injury

Mount Sinai School of Medicine

Department of Physical Medicine and Rehabilitation

One Gustave Levy Place, Box 1240

New York, NY 10029-6574

marcel.dijkers@mssm.edu

Principal Investigator: Marcel Dijkers, PhD

Public Contact: 212/659-8587; Fax: 212/348-5901

Project Number: H133G030026

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $149,999

Abstract: This project is a longitudinal study of individuals with TBI who are on average 18 years

post-injury. Between 1994 and 1997, the Research and Training Center on the Community Integration

of Individuals with TBI at Mount Sinai School of Medicine conducted extensive quality of life and

health interviews with over 800 individuals with TBI, spinal cord injury (SCI) and no disability (NO).

The researchers for the current project will re-interview these same individuals eight to nine years after

their initial interview, using most of the original measures. This project has three main objectives: (1) to

document long-term psychosocial functioning post-TBI and its change over time; (2) to examine

longitudinally subjective quality of life post-TBI as a primary indicator of adjustment to TBI; (3) to

determine the predictors of change in subjective quality of life. The comparison groups provide a

means of examining whether the changes observed in individuals with TBI reflect the unique experience of living with a TBI, the broader experience of living with a disability (comparison with the SCI

group), or the general challenges we all face in conducting our daily lives (comparison with the NO

group). Results of the study are disseminated through public conferences for both professionals and

consumers, through publications in journals for consumers and professionals, and through the development of reports specifically targeted to individuals with TBI.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-37

Field-Initiated Projects (FIPs)

Ohio

Neuropsychological Functioning and Psychosocial Adjustment in

Adolescents with Spina Bifida and NLD

Children’s Hospital Medical Center

Division of Psychology

3333 Burnet Avenue

Cincinnati, OH 45229-3039

robert.ammerman@chmcc.org

Principal Investigator: Robert T. Ammerman, PhD

Public Contact: 513/636-8209; Fax: 513/636-7756

Project Number: H133G000134

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 00 $147,750; FY 01 $149,958; FY 02 $147,623; FY 03 (No-cost extension

through 3/31/2004)

Abstract: This study examines the relationship between type and severity of neuropsychological

impairment, in particular the nonverbal learning disability (NLD) profile, and psychosocial functioning

in adolescents with spina bifida. Adolescents with spina bifida exhibit a variety of neurocognitive

deficits that are thought to undermine psychosocial adjustment. Between 40 and 50 percent have

neuropsychological impairments indicative of NLD, which is strongly associated with poor social

adjustment and internalizing behavior problems (e.g., depression). In general, adolescents with spina

bifida display problems in behavioral, social, and personality adjustment, although there is considerable

variability in this population. Primary goals of the study are to: (1) identify differential patterns of

psychosocial management at different points in adolescent development; (2) determine the predictive

utility of the NLD profile to subsequent psychosocial functioning and determine if psychosocial

problems increase with age in those with NLD; and (3) test whether family functioning moderates the

association between neuropsychological impairment and psychosocial adjustment. Results from this

study elucidate causal relationships between neuropsychological impairment and psychosocial functioning in adolescents with spina bifida, delineate risk factors that contribute to early identification and

the design of effective interventions, and reveal patterns of psychosocial functioning across age in

adolescents.
4-38 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Field-Initiated Projects (FIPs)

Oregon

Getting A Life: Research on Individual and Person-Centered Planning

Processes in Oregon

University of Oregon

Educational and Community Supports

1235 University of Oregon

Eugene, OR 97403-1235

ralbin@oregon.uoregon.edu

www.uoecs.org/grants/ECSprojects.htm

Principal Investigator: Richard Albin, PhD

Public Contact: 541/346-2464; Fax: 541/346-5517

Project Number: H133G010167

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $149,999; FY 02 $149,999; FY 03 $149,997

Abstract: This project researches the relative merits of forms of Person- Centered Planning (PCP),

including the Individualized Support or Service Plan (ISP) system, Essential Lifestyle Planning (ELP),

and others. Activities include the following three studies: (1) surveying the features of individual

planning systems used in Oregon at the start of the project and in Year 3 after large scale systems

change efforts have occurred; (2) creating a causal-comparative 3-by-2 factorial group design, where

study participants are assigned to groups based on whether they are experiencing a defined set of

significant life challenges and the types of service planning they receive, with groups balanced or

blocked based on demographic variables; and (3) creating a multiple-baseline single subject design in

which the outcomes of three service planning approaches (ISPs, ELPs, and PCP) are compared related

to specific outcomes for six individuals who experience challenging behavior.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-39

Field-Initiated Projects (FIPs)

Oregon

Resilience in Students with TBI: A Longitudinal Investigation

Western Oregon University

Teaching Research Division

99 West 10th Avenue, Suite 370

Eugene, OR 97401

anng@oregon.uoregon.edu

Principal Investigator: Ann E. Glang, PhD

Public Contact: 541/346-0594; Fax: 541/346-0599

Project Number: H133G030179

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $149,950

Abstract: The project extends the work of Project PSO, a project investigating post-secondary outcomes for young adults with TBI, for three more years, during a time when the subjects are making

significant life adjustments in the areas of post- secondary education, employment, independent living,

and interpersonal relationships. Now in its fifth and final year, the Project’s quantitative and qualitative

data are revealing that some of the 92 subjects appear to be resilient, achieving successful post-injury

adjustments, while others are experiencing difficulty, becoming dependent on family members for

instrumental and social support. The data are also beginning to suggest that access to specific types of

educational interventions and support services account for these differences in adjustment. In addition,

this project investigates factors that facilitate and impede delivery of services and support to young

adults with TBI from key agencies, including VR, Social Security Administration, and state social

service agencies serving individuals disabilities.
4-40 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Field-Initiated Projects (FIPs)

Oregon

Men’s Personal Assistance Services Abuse Research Project

Oregon Health and Science University

Center for Self-Determination

3608 Southeast Powell Boulevard

Portland, OR 97202

powersl@ohsu.edu; mcneffe@ohsu.edu

cdrc.ohsu.edu/selfdetermination/index.html

Principal Investigator: Laurie Powers, PhD, 503/232-9154, ext. 104

Public Contact: Elizabeth McNeff, MPA, MHA, 503/232-9154, ext. 150; Fax: 503/232- 6423

Project Number: H133G010040

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000

Abstract: This project focuses on prevention and management of personal assistance service (PAS)

abuse carried out against men with disabilities who are living independently in the community, who are

abused by their formal or informal PAS providers. It increases identification, assessment, and response

by: (1) developing a knowledge base regarding men’s definitions, perceptions, and experiences of PAS

abuse; (2) designing a culturally sensitive screening and assessment approach that can be used by men,

Centers for Independent Living (CILs), and health and disability services providers to identify PAS

abuse; and (3) identifying culturally appropriate response strategies that can be used by men, CILs, and

health and disability services providers to prevent and manage PAS abuse. The project is

collaboratively conducted by the Center on Self-Determination at the Oregon Institute on Disability

and Development of Oregon Health Sciences University, the World Institute on Disability, and Berkeley Planning Associates.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-41

Field-Initiated Projects (FIPs)

Oregon

Community Environmental Assessment Project: A Multi-Method

Approach to Identify Barriers, Assets, and Engage Communities for

Change

Oregon Health and Science University

P.O. Box 574

Portland, OR 97207-0574

drumc@ohsu.edu

cdrc.ohsu.edu/oodh

Principal Investigator: Charles Drum, JD, PhD, 503/494-8047

Public Contact: 503/494-3331; Fax: 503/494-6868

Project Number: H133G020125

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Unknown

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Abstract: This project develops a multi-method approach to measure a community’s level of accessibility. The project measures accessibility of communities through a process of community engagement

and use of extant data. Effectively measuring community accessibility through the explication and

depiction of extant data at the local level can provide the means for participatory social change at low

cost, using available resources. The project’s major objectives and activities include: (1) identifying

access issues in different communities through a call-back survey of people with disabilities, summarizing results by type and location of community; (2) engaging community members to identify local

needs and resources and measurable indicators of barriers and facilitators; (3) developing community

profiles based on measurable indicators (including statistical data and maps with geographic information systems); (4) evaluating community access at the local community level by reviewing all data and

maps to address future plans, policies, or interventions to improve access with disability experts,

community leaders, service and government agencies, and planners; and (5) developing and disseminating a handbook that summarizes the multi-method approach. The project summarizes procedures

and findings and disseminates them nationally.
4-42 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Field-Initiated Projects (FIPs)

Oregon

Healthy Lifestyles Evaluation Project

Oregon Health and Science University

P.O. Box 574

Portland, OR 97207-0574

drumc@ohsu.edu

cdrc.ohsu.edu/oodh

Principal Investigator: Charles Drum, JD, PhD, 503/494-8047

Public Contact: 503/494-3331; Fax: 503/494-6868

Project Number: H133G020231

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Abstract: This project evaluates the effectiveness of the Healthy Lifestyles for People with Disabilities

training curriculum. To achieve this goal, the project: (1) conducts ten Healthy Lifestyles training

events for persons with disabilities through local Centers for Independent Living within the Portland

metropolitan area and statewide; (2) assesses the level of wellness and the healthy lifestyles attitudes,

knowledge, and skills of participants over the course of the project (before and after participating, and

over time, to evaluate the effectiveness of the curriculum in establishing and maintaining long-term

lifestyle changes); (3) assesses participants’ completion of lifestyle change goals; and (4) compares

participants’ wellness and healthy lifestyles attitudes, knowledge, and skills to that of controls.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-43

Field-Initiated Projects (FIPs)

South Carolina

Stability of Vocational Interests Two Years after Spinal Cord Injury:

Relationship with Employment, Participation, and Subjective WellBeing

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

Research Office

19 Hagood Ave, Suite 910

PO Box 250822

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD, 843/792-1337

Public Contact: Jennifer Coker, MPH, 843/792-2605; Fax: 843/792-1107

Project Number: H133G030151

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $149,944

Abstract: The primary objectives of this study are to identify how much interests change in the first

two years after SCI onset, factors related to change, and the extent to which interest type and interest

change are associated with employment, participation, and subjective well-being. Return to gainful

employment has been widely endorsed as fundamental rehabilitation goal after the onset of a SCI, yet

employment rates for people with SCI rarely exceed 30 percent. This high unemployment rate is

generally attributed to the dramatic impact of SCI on ability to perform job functions requiring physical

strength and dexterity. However, successful employment is related to both the extent to which the

individual is able to perform the needed job functions and the degree to which the job environment and

job tasks are intrinsically interesting to the individual. Unfortunately, research has shown that SCI often

occurs selectively to people whose interests are in physically challenging activities that may no longer

possible given the physical limitations imposed by SCI. The impact of no longer being able to perform

intrinsically rewarding activities not only poses a threat to successful return to work, but also to overall

participation in society and subjective well-being. By helping rehabilitation professionals to better

understand the relationships of both interest type and interest stability with employment, participation,

and well-being, this study lays a foundation for intervention strategies that maximize opportunities for

participation and help people with SCI to lead fulfilling and rewarding lives.
4-44 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Field-Initiated Projects (FIPs)

Texas

Depression and Rural Women with Disabilities: Testing a CIL-Based

Self-Management Program

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

Center for Research on Women with Disabilities

3440 Richmond Avenue, Suite B

Houston, TX 77046-3403

rhughes@bcm.tmc.edu

www.bcm.tmc.edu/crowd

Principal Investigator: Rosemary B. Hughes, PhD

Public Contact: 713/960-0505; Fax: 713/961-3555

Project Number: H133G030170

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $150,000

Abstract: This project evaluates a depression self-management intervention for reducing and preventing depression in rural women with disabilities. The intervention is designed to increase participants’

understanding and self-management of depression as it relates to experiences of secondary and chronic

health problems, stress, lack of support, chronic pain, and abuse. This study is implemented in eight

rural centers for independent living. The goals of this project are to (1) identify, address, and evaluate

the mental health of rural women with physical disabilities, including women with newly recognized

disabilities such as chronic fatigue immune deficiency syndrome and fibromyalgia; and (2) disseminate

the findings to rural women with disabilities, rural independent living counselors, researchers, and

mental health service providers.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-45

Field-Initiated Projects (FIPs)

Washington

Multi-Family Group Intervention for Traumatic Brain Injury and

Spinal Cord Injury Patients and Families

Inland Northwest Health Service

711 South Cowley Street

Spokane, WA 99202-1330

beckerb@st-lukes.org

Principal Investigator: Bruce Becker, MD

Public Contact: 509/473-6043; Fax: 509/473-6020

Project Number: H133G020006

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Abstract: This project establishes two SCI and two TBI multi-family group (MFG) interventions to

support and teach families and patients about the disability process and management strategies. MFG is

a structured management strategy that has been extensively tested in the management of chronic

schizophrenia and more recently adapted for other chronic disabling conditions. This strategy brings

together groups of six to eight families with two MFG group clinician/facilitators in a psycho-educational problem-solving format, over a period of 18 months. Families are given the opportunity to

discover and share problems and solutions about the process of living with other families and patients

through the implementation of practical guidelines for effective coping. The intervention has been

highly effective in reducing relapse and hospitalizations, and improving symptom control and quality

of life, for persons with schizophrenia. This project compares TBI and SCI MFG groups for ease of

implementation, efficacy (process and outcome), and cost, adapting measures previously studied in

schizophrenia with those used in assessing family stress in SCI and TBI.
4-46 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Colorado

Pocket Compass: A Palmtop Computer-Based Intelligent Aid for

Individuals with Mental Retardation to Increase Independence and

Self-Determination in Decision Making

AbleLink Technologies, Inc.

1879 Austin Bluffs Parkway, Suite 100

Colorado Springs, CO 80918

steve@assess.net

www.ablelinktech.com

Principal Investigator: Daniel K. Davies

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: ED-01-PO-3664

Start Date: September 17, 2001

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $60,000; FY 03 150,000

Abstract: This project helps individuals with mental retardation navigate the cognitive process of

making appropriate decisions by developing and evaluating Pocket Compass, a portable software

system that uses an expert-system approach combined with intelligent audio and visual cues. Achieving greater independence and self- determination for individuals with mental retardation depends upon

the ability to make appropriate decisions independently. This device should be useful in the acquisition

of decision-making skills relating to community involvement in areas such as work, recreation, and

independent living where available choices can be rationally predicted. Research activities include: (1)

determining the user interface, technical, and functional requirements of the system; (2) designing and

building a software prototype on the Pocket PC platform; and (3) conducting a pilot study to evaluate

the utility of the system for improving independence and self-determination in decision making for

adults with mental retardation.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-47

Small Business Innovative Research (SBIR), Phase I

Colorado

Pocket Voyager: Making Palmtop Computers Accessible to Individuals

with Mental Retardation

AbleLink Technologies, Inc.

1879 Austin Bluffs Parkway, Suite 100

Colorado Springs, CO 80918

steve@assess.net

www.ablelinknet.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: ED-01-PO-3665

Start Date: September 17, 2001

Length: 24 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $60,000; FY 03 149,997

Abstract: This project researches and develops Pocket Voyager, a specially designed multimedia

application to make the features and programs on palmtop computers more independently accessible to

individuals with mental retardation. Palmtop computers are becoming an increasingly common platform for AT developers, in part because of their portability, integrated touch-screens, multimedia

capabilities, removable storage options, and PC slot accessories that extend the capacities of the system. Also, mainstream production makes them a more desirable development platform than specially

designed hardware units, with lower costs due to high-volume production runs and significantly more

research and development attention. Software products are being developed that are designed to be

used by individuals with mental retardation in areas such as communication, schedule maintenance,

and task completion, but great difficulty is encountered when a user exits the closed environment of a

specialized software application and must use the palmtop computer’s interface to, for example, launch

another desired application. AbleLink builds upon methodologies used in developing its current

Voyager desktop application for Windows desktop computers. The project involves determining the

functional, interface, and technical requirements for such a system, building a software prototype, and

then evaluating that prototype in a pilot study to assess its utility for making palmtop computers more

independently accessible to individuals with mental retardation. The prototype utilizes multimedia and

error minimization methodologies to make other software programs and features on the computer more

accessible.
4-48 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Small Business Innovative Research (SBIR), Phase I

Illinois

SEAMS: Special Education Administrative Management System

Data Harbor

221 West Walton

Chicago, IL 60610

wcb@dataharbor.com

www.dataharbor.com

Principal Investigator: William L. Cats-Baril, PhD

Public Contact: 312/953-8748; Fax: 312/944-1507

Project Number: H133S030210

Start Date: October 1, 2003

Length: 6 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $68,350

Abstract: The overall objective of the project is to develop a prototype of a web-based Special Education Administrative Management System (SEAMS) to support the administration of local, state and

federal special education laws and regulations such as the Individuals with Disabilities Education Act

(IDEA). SEAMS is a comprehensive system designed to be used by everyone involved in the special

education process including special educators, parents, general education teachers, allied health professionals, principals, local, state, and federal administrators. The goals of SEAMS are to: (1) minimize

the administrative burden of assembling, completing, tracking, and updating the required paperwork;

(2) give all stakeholders real-time access to a student’s performance; (3) allow educators to spend more

time customizing pedagogical strategies and monitoring the student’s performance; and (4) facilitate

better tracking of outcomes and the documentation of best practices.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-49

Small Business Innovative Research (SBIR), Phase I

Texas

CyberCoach: An Automated System to Help Integrate Individuals with

Memory Disabilities Into Employment or Independent Living Settings

Applied Human Factors, Inc.

PO Box 228

Helotes, TX 78023

info@ahf-net.com

www.ahf-net.com

Principal Investigator: James E. Schroeder, PhD

Public Contact: 210/408-0098

Project Number: H133S030189

Start Date: October 1, 2003

Length: 6 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 03 $70,000

Abstract: This project designs and tests the feasibility of the CyberCoach system which helps persons

with memory deficits perform tasks related to employment and independent living. The primary user

interface is speech, with CyberCoach using synthesized or recorded speech output and speech recognition for input. A standard computer serves as the base unit and a digital phone as the user’s remote unit.

The system is also capable of exchanging text, pictures, and auditory information. CyberCoach also

serves as a communication hub, originating or relaying information to other appropriate participants

(e.g., work supervisor, rehabilitation professional, family member). The project also investigates the

use of the global positioning system as a tool for helping the user perform work-related and independent-living tasks. Front- end analysis is conducted to determine: (1) target functional capabilities of the

proposed system and (2) corresponding capabilities available in current products. A test is conducted to

determine the accuracy of current speech recognition technology when the voice signal is from a

limited set and transmitted from a remote digital phone.
4-50 NIDRR Program Directory FY 2003 - Independent Living & Community Integration

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Colorado

Pocket Compass: A Palmtop Computer-Based Intelligent Aid for

Individuals with Mental Retardation to Increase Independence and

Self-Determination in Decision Making

AbleLink Technologies, Inc.

528 North Tejon Street, Suite 100

Colorado Springs, CO 80903-1158

steve@assess.net

www.ablelinktech.com

Principal Investigator: Daniel K. Davies

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: ED-01-PO-3664 (5-2)

Start Date: September 17, 2002

Length: 24 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $149,997; FY 03 $149,997

Abstract: This project develops and evaluates Pocket Compass, a decision- making aid for people

with mental retardation. Achieving greater independence and self- determination for individuals with

mental retardation depends upon the ability to make appropriate decisions independently. The portable

software system uses an expert-system approach combined with intelligent audio and visual cues to

help individuals navigate the cognitive process of making appropriate decisions. This device is useful

in acquiring decision-making skills relating to community involvement in areas such as work, recreation, and independent living, where available choices can be rationally predicted. This project completes Phase I of the Pocket Compass intelligent decision aiding system, builds a companion desktop

software utility to help set up and manage decision assistance scenarios for multiple individuals, and

performs expanded field testing of the system to evaluate its applicability in supporting a wide range of

types of decisions.
NIDRR Program Directory FY 2003 - Independent Living & Community Integration 4-51

Small Business Innovative Research (SBIR), Phase II

Maryland

Development and Testing of LD/LEP Friendly Computer Textbooks in

Diverse Subjects, Classrooms, and Formats

Visibooks, LLC

10 Norva Avenue

Frederick, MD 21701

chris@visibooks.com

www.visibooks.com

Principal Investigator: Christopher Charuhas

Public Contact: 240/344-1321; Fax: 240/344-1321

Project Number: H133S030008

Start Date: October 1, 2003

Length: 24 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $326,950

Abstract: This project determines if textbooks based on a Phase I prototype help students with learning disabilities and low-English-proficiency (LEP) learn computer subjects better, faster, and easier.

The study also determine if these textbooks are suitable for mainstream students, and if the books are

effective when used in electronic format. Twenty Phase I-type textbooks on common computer subjects are produced and distributed to high school, college, and adult education computer classes containing LD, LEP, and mainstream students. One group of classes uses bound copies, another uses

electronic copies, and a control group uses textbooks currently on the market. At the beginning of the

semester, students in each class take a pre-test to measure existing knowledge. At the end of the semester, they take a post-test to measure what they’ve learned. Test data from two semesters is used to

compare the progress of students in the bound, electronic, and current-book test groups.
Associated Disability Research Areas

Related disability research emphasizes knowledge areas that are cross-cutting and

essential to the support and refinement of disability research generally. The common

theme linking disability statistics, outcome measures, and the emerging fields of

disability studies, rehabilitation science, and disability policy research is that they all

provide essential frameworks and building blocks for the research and address

important issues in a meaningful way.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Disability and Rehabilitation Research Projects .................................................................................... 9

Field-Initiated Projects (FIPs) .............................................................................................................. 10

NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas 5-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Arizona

American Indian Rehabilitation Research and Training Center

Arizona University Center on Disabilities

Institute for Human Development

Northern Arizona University

Box 5630

Flagstaff, AZ 86011-5630

priscilla.sanderson@nau.edu

www4.nau.edu/ihd/airrtc/

Principal Investigator: Richard Carroll, PhD, 928/523-7033

Public Contact: Priscilla Lansing Sanderson, Project Director, 928/523-4791 (V); 928/523-1695

(TTY); Fax: 928/523-9127

Project Number: H133B980049

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $595,000; FY 99 $605,000; FY 00 $605,000; FY 01 $739,500; FY 02

$600,000; FY 03 (No-cost extension through 12/31/2003)

Abstract: This Center develops, implements, and conducts research and training activities around four

core areas. Eight research projects and six training projects focus on: (1) investigating and analyzing

existing disability and employment data, and recommending methodology for planning and evaluating

employment services for American Indians and Alaska Natives; (2) recommending successful strategies to improve employment outcomes, including existing employment and VR service practices for

American Indians and Alaska Natives with disabilities on or off reservations; (3) developing and

evaluating innovative and culturally appropriate VR services for the employment of American Indians

and Alaska Natives; and (4) disseminating results of the data collection and evaluation of model

employment services to a range of relevant audiences, using appropriate accessible formats. Consultation with researchers, CANAR, and the training team helps develop a dissemination method that is

accessible and acceptable for each respective target community. Information and resources are developed and disseminated to providers, tribal and state vocational rehabilitative agencies, consumers, and

Regional Continuing Education Programs.
5-4 NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas

Rehabilitation Research and Training Centers (RRTCs)

California

Disability Statistics Rehabilitation Research and Training Center

University of California/San Francisco

3333 California Street, Room 340

San Francisco, CA 94118

distats@itsa.ucsf.edu

dsc.ucsf.edu

Principal Investigator: Mitchell P. LaPlante, PhD

Public Contact: 415/502-5210 (V, General Information); 415/502-5216 (TTY); Fax: 415/502-5208

Project Number: H133B980045

Start Date: December 1, 1998

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 98 $700,000; FY 99 $750,000; FY 00 $700,000; FY 01 $700,000; FY 02

$700,000; FY 03 (No-cost extension through 11/30/2004)

Abstract: The Center conducts research in the demography and epidemiology of disability including

costs, employment statistics, health and long-term care statistics, and statistical indicators. Statistical

information is disseminated through published statistical reports and abstracts, journals, professional

presentations, and a publications mailing list. Training activities and resources (such as a predoctoral

program) disseminate scientific methods, procedures, and results to both new and established researchers, policy-makers, and other consumers, and assist them in interpreting statistical information. A

National Disability Statistics and Policy Forum is conducted periodically to foster dialogue between

people with disabilities and representative organizations, researchers, and policy-makers.
NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas 5-5

Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Policies Affecting

Families of Children with Disabilities

University of Kansas

Beach Center on Disability

Haworth Hall, Room 3136

1200 Sunnyside Avenue

Lawrence, KS 66045-7534

turnbull@ku.edu

www.beachcenter.org

Principal Investigator: Ann Turnbull, EdD; H. R. Turnbull, LLM

Public Contact: H. R. Turnbull, LLM, 785/864-7600; Fax: 785/864-7605

Project Number: H133B980050

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 98 $650,000; FY 99 $650,000; FY 00 $650,000; FY 01 $650,000; FY 02

$650,000; FY 03 (No-cost extension through 9/30/2004)

Abstract: This project assesses policies and services and their impact on families’ quality of life,

focusing on four priorities: (1) developing an analytical framework for policy and service analysis; (2)

developing measurement tools that apply state-of-the-art legal and policy analysis methodologies to the

assessment of policies, service systems, and family outcomes; (3) identifying impacts of partnership

(including interagency collaboration and coordination) on family outcomes; and (4) conducting research with families from diverse backgrounds in several communities and states (Kansas, Louisiana,

and North Carolina). This research agenda is composed of five comprehensive training projects, six

dissemination projects, and five technical assistance projects. Training activities include: (a) pre-service

training and the preparation of three textbooks; (b) in-service training that helps service providers and

families form community coalitions using the measurement toolkit; and (c) sponsorship of an international state-of-the-science conference. Dissemination activities include: (a) networking with federal

agencies; (b) developing and disseminating the measurement toolkit, six users’ manuals, and a management information software package; and (c) publishing articles in peer-reviewed newsletters, research

briefs, fact sheets, a web site, and a newsletter. Technical assistance focuses on: (a) enhancing federal

and state policies; (b) conducting summer institutes with state-local partners on policy and service

analyses; and (c) developing partnerships with federal agency liaisons, grantees, and key family and

professional organizations to mentor them in using the results of project research to enhance policies

and services.
5-6 NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas

Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Policies Affecting

Families of Children with Disabilities

University of Kansas

Center for Research, Inc.

Beach Center on Disability

Haworth Hall, Room 3136

1200 Sunnyside Avenue

Lawrence, KS 66045-7534

turnbull@ku.edu

www.beachcenter.org

Principal Investigator: H.R. Turnbull, LLM; Ann Turnbull, EdD

Public Contact: H. R. Turnbull, LLM, 785/864-7600; Fax: 785/864-7605

Project Number: H133B031133

Start Date: November 1, 2003

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $749,951

Abstract: This center conducts eight research projects on the effects of the policies of governments,

systems, networks, and agencies on the family quality of life and community integration (FQOL/FCI)

of families who have children with developmental disabilities and emotional-behavioral disabilities or

both. Researchers identify four target populations: families, providers, policy-leaders, and networks (all

at the federal, state, and local levels). Three policy challenges are prisms through which the effects of

policy on families can be understood: early intervention, alternative schools, and consumer control of

funding. For each policy challenge, researchers inquire into whether the applicable federal and state

policies and practices, and the applicable network policies, advance FQOL/FCI; whether the policies

across education, social services, and health care are mutually consistent with each other and advance

FQOL/FCI; and whether the practices of agencies in those systems advance FQOL/FCI. The center’s

analytical framework holds that the core concepts shape policies; policies shape services; policies and

services should be coordinated and delivered through partnerships; enhanced FQOL/FCI occurs when

there is coherence among core concepts, coordinated policies delivered through partnerships, and

coordinated services delivered through partnerships; and influencing factors must invariably be taken

into account.
NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas 5-7

Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center on Measuring

Rehabilitation Outcomes

Boston University

Sargent College of Health and Rehabilitation Sciences

635 Commonwealth Avenue

Boston, MA 02215

rmonarch@bu.edu

www.bu.edu/cre/rehaboutcomes

Principal Investigator: Alan M. Jette, PhD, 617/353-2704

Public Contact: Roseanne Monarch, 617/353-1297; 617/353-3277; Fax: 617/358-1355

Project Number: H133B990005

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $699,736; FY 00 $699,868; FY 01 $699,745; FY 02 $698,812; FY 03

$699,946

Abstract: This Center develops new, more effective outcomes measurement tools and applies these

tools to determine the effectiveness of medical rehabilitation interventions. Research components

include: (1) identifying gaps in existing outcome measures and developing new instruments that

address these gaps as part of a rehabilitation outcomes system; (2) critically evaluating the newly

developed instruments against tools currently in use; (3) implementing the newly developed outcome

instruments across impairment groups and across rehabilitation settings to assess their feasibility,

responsiveness, and validity; (4) investigating the extent to which specific rehabilitation interventions

affect outcomes following the onset of a stroke; and (5) applying modern psychometric techniques to

develop dynamic outcome instruments that can also be used with individual patients in a clinical

setting. Several components have been designed to enhance the translation of research findings into

rehabilitation practice and to provide stakeholders with the opportunity to provide input into the Center

including surveys of the use of medical rehabilitation outcomes data, consensus conferences, institutes,

fellowships, a web site, and a consumer guide to choosing postacute care services.
5-8 NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas

Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Demographics and

Statistics

Cornell University

Ives Hall, Room 331

Ithaca, NY 14853

ajh29@cornell.edu

www.disabilitystatistics.org

Principal Investigator: Andrew J. Houtenville, PhD

Public Contact: 607/255-5702 (V); 607/255-2891 (TTY); Fax: 607/255-3274

Project Number: H133B031111

Start Date: December 1, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $750,000

Abstract: The RRTC on Demographics and Statistics (Cornell StatsRRTC) bridges the divide between the sources of disability data and the users of disability statistics. The project conducts research

exploring the reliability of existing data sources and collection methods, and studies the potential to

improve current and future data collection efforts. In addition, the project utilizes existing data sources

to provide a comprehensive and reliable set of statistics, increase access to and understanding of how

statistics can be used effectively to support decision making. Cornell StatsRCC works with key organizations to determine their needs and helps them maximize the use of disability statistics in their ongoing

efforts to improve the lives of people with disabilities and their families. As members of the Cornell

StatsRRTC, the American Association of People with Disabilities the Center for an Accessible Society, and InfoUse provide vital expertise and resources needed to reach the users of disability data and

statistics. The StatsRRTC includes researchers from Cornell University, Mathematica Policy Research,

the Urban Institute, and the Institute for Matching People and Technology, all of which bring extensive

expertise in working with and creating sources of disability data.
NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas 5-9

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

Emergent Disability, Systems Change, and Employment of People with

Disabilities

University of Massachusetts

Institute for Community Inclusion

100 Morrissey Boulevard

Boston, MA 02115

susan.foley@umb.edu

www.communityinclusion.org

Principal Investigator: Susan Foley, PhD; Doris Hamner, PhD, 617/287-4317 (Foley); 617/287-4364

(Hamner)

Public Contact: Susan Foley, PhD, 617/287-4317; Fax: 617/287-4352

Project Number: H133A021503

Start Date: December 1, 2002

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $300,000; FY 03 $300,000

Abstract: This project examines state service systems to document the impact of federal policies and

practices on systems change and how such changes affect people with disabilities. Research activities

include: (1) analysis of national, state, and local data collection systems and actual employment outcomes for people with disabilities; (2) documentation of data sets being used by state agencies to

measure effectiveness and how these could be used to examine outcomes for people with disabilities;

and (3) examination of how people with disabilities fare within the existing system and challenges they

may face through direct consumer research. The goals of the project are: (1) to develop a clear description and presentation of how federal policies impact systems change efforts; (2) to identify how these

policies and practices affect the lives of people with disabilities; (3) to identify procedures for a more

integrated approach to gathering data that better explains the consumer outcomes of these services; and

(4) to document how people with disabilities progress within the service system.
5-10 NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

California

Disability Rights and the Independent Living Movement: The

Formative Years Nationwide

University of California/Berkeley

The Bancroft Library

UC Berkeley, 486

Berkeley, CA 94720-6000

tsalazar@library.berkeley.edu

bancroft.berkeley.edu/collections/drilm.html

Principal Investigator: Charles B. Faulhaber, PhD, 510/642-3781

Public Contact: Theresa Salazar, 510/643-8153; Fax: 510/642-7589

Project Number: H133G000083

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 00 $150,000; FY 01 $150,000; FY 02 $150,000; FY 03 (No-cost extension

through 7/31/2004)

Abstract: This project creates a national platform for comprehensive research on the origins and

leadership of the independent living and disability rights movement in the United States. An experienced team collects and preserves oral histories and archival records of pivotal leaders and key organizations across the country, before they are irretrievably lost. The documentation that is generated about

the formative years of the movement is to be made widely available for research use, both on the

Internet and in appropriate archival repositories. The project includes three main components: (1) oral

history interviews with 50 to 60 national and regional leaders of the movement, (2) collection and

preservation of historical records in archival repositories, and (3) the creation of an Internet-based

Disability Rights and Independent Living Movement Digital Archive that includes oral histories,

selected documents, and finding aids for collected materials at all repositories.
NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas 5-11

Field-Initiated Projects (FIPs)

Colorado

National Study Of Disability Finance

University of Colorado Health Sciences Center

4001 Discovery Dr., Suite 210

Boulder, CO 80303

braddock@cu.edu

Principal Investigator: David L. Braddock, PhD

Public Contact: 303/492-0639

Project Number: H133G030149

Start Date: December 1, 2003

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $150,000

Abstract: The project is a unique and comprehensive longitudinal study of the financial and programmatic structure of public spending for disability in each state of the US and at the national level. The

study develops and maintains a state-by-state and national database on public spending for mental,

physical, and sensory disability during 1997-2004, and investigates the determinants of that spending.

The project includes a wide-ranging dissemination and technical assistance program on innovative

financing of disability programs in the US, based on the results of this research. The project also

includes a consortium of dissemination and technical assistance partnerships with five national organizations: the National Conference of State Legislatures, the 100-agency-member Washington DC-based

Consortium for Citizens with Disabilities, the National Council on Independent Living, the National

Alliance for the Mentally Ill, and the grassroots ADAPT organization (Americans Disabled for Attendant Programs Today).
5-12 NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas

Field-Initiated Projects (FIPs)

Illinois

An Analysis of the Demography of Living Standards, Health, and

Poverty of Persons with a Disability Living in Third World Nations

Based on Data from the World Bank

University of Illinois at Chicago

1640 West Roosevelt Road

Chicago, IL 60608-7205

gfujiura@uic.edu

www.uic.edu/depts/idhd/ced

Principal Investigator: Glenn T. Fujiura, PhD

Public Contact: 312/413-1977; Fax: 312/413-4098

Project Number: H133G010139

Start Date: November 1, 2001

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000

Abstract: This project analyzes World Bank economic development data in 24 developing nations of

the world. The goal of the analysis is to describe basic demographics and their relationship to the living

standards of persons with a disability. The overall goals of the project are to elevate awareness of

disability issues globally, to assist local advocacy efforts in raising awareness of disability as a basic

development issue, and to stimulate a dialogue regarding the international role in the evolving paradigm of disability. Primary areas of emphasis are: (1) characterization of employment, economic status,

and social well-being (i.e., access to health services, supports, assets); (2) estimation of the magnitude

of disablement within nations; (3) identification of subgroups within each nation that are most vulnerable to disablement; (4) analysis of the status of women with disabilities; (5) identification of unique

regional concerns; and (6) broad comparisons of the living standards in the developing world to those

of the U.S. The project employs systems initiated by the World Bank in 1980 called the Living Standards Measurement Survey (LSMS) project, which involves sophisticated population-based household

surveys on economic behavior and living standards in underdeveloped nations. This project is a

collaborative effort by the Department of Disability and Human Development at the University of

Illinois/Chicago and Disabled Peoples’ International. The project operationalizes the principles of

participatory action research by employing the expertise of regional representatives of the DPI, a

consumer-driven, cross-disability network with member organizations in more than 158 countries, of

which more than half are in the developing world.
NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas 5-13

Field-Initiated Projects (FIPs)

Illinois

Differences in Mental Health Service Satisfaction Among Clients

Interviewed by Consumer and Non-Consumer Researchers Using

Computer-Assisted Personal Interview (CAPI) Technology

University of Illinois at Chicago

RRTC on Psychiatric Disability

104 South Michigan Avenue, Suite 900

Chicago, IL 60603

pickett@psych.uic.edu

www.psych.uic.edu/uicnrtc

Principal Investigator: Susan Pickett-Schenk, PhD

Public Contact: 312/422-8180, ext. 17; Fax: 312/422-0740

Project Number: H133G020027

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Abstract: This study compares differences in service satisfaction ratings made by clients interviewed

by researchers who are and are not mental health consumers to better understand mental health consumers’ evaluations of the services they receive. In a randomized design, 400 clients complete satisfaction surveys administered by mental health consumer researchers and 400 clients complete satisfaction

surveys administered by non-consumer researchers. Computer-assisted personal interview (CAPI)

technology is used to administer the satisfaction surveys. Study results provide important information

on clients’ satisfaction with community mental health programs, the effect of researchers’ consumer

status on program satisfaction ratings, and the use of CAPI technology in mental health program

evaluation.
5-14 NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas

Field-Initiated Projects (FIPs)

Massachusetts

Rehabilitation Readiness Tool for Latinos with Psychiatric Disabilities

Boston University

Latino Initiatives at the Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215

mertoro@bu.edu

www.bu.edu/cpr

Principal Investigator: Maria Restrepo-Toro, MS; Marianne Farkas, ScD

Public Contact: Maria Restrepo-Toro, MS, 617/353-3549; Fax: 617/353-7700

Project Number: H133G020181

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $149,776; FY 03 $149,897

Abstract: This project develops a Rehabilitation Readiness Tool for Latino Consumers with Serious

Psychiatric Disabilities. Based on information gathered about the experience of Latino consumers with

psychiatric disabilities. This tool can be used by professionals and /or the person’s family or natural

support system to assess and develop the individual’s readiness for rehabilitation in an effective and

culturally appropriate way. To implement the project the Center for Psychiatric Rehabilitation at

Boston University is collaborating with Maria Sardinas Center (MSC) and South Bay Guidance

Center (SBGC), both programs of Community Research Foundation in San Diego, CA, and Center

House, Inc., and Casa Primavera, both programs of Bay Cove Human Services in Boston, MA. The

present proposal addresses several barriers related to Latino service underutilization, including a lack of

understanding of how to begin services in a way that matches the Latino clients’ needs (i.e., readiness

to engage) and the absence of accompanying readiness educational materials in Spanish. The tool

generated by this project allows rehabilitation professionals, family members, and /or other natural

supports to help Latinos engage more successfully in the rehabilitation process. This innovation helps

to provide a bridge between existing rehabilitation services and the potential Latino consumer.
NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas 5-15

Field-Initiated Projects (FIPs)

Minnesota

Secondary Analyses of Persons with Disabilities in the 1994-1995

Disability Supplement to the National Health Interview Survey and in

1999 and 2000 NHIS Surveys

University of Minnesota

Institute on Community Integration

214 B Pattee Hall

150 Pillsbury Drive Southeast

Minneapolis, MN 55455

larso072@umn.edu

rtc.umn.edu/nhis

Principal Investigator: Sheryl Larson, PhD; Charlie Lakin, PhD, 612/624-6024 (Larson); 612/624-

5005 (Lakin)

Public Contact: 612/624-6024; Fax: 612/625-6619

Project Number: H133G020037

Start Date: August 01, 2002

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $135,670; FY 03 $140,139

Abstract: This project conducts and disseminates the results of focused secondary analyses of data on

persons with developmental and other disabilities within the 1994-1995 Disability Supplement to the

National Health Interview Survey (NHIS-D) and within 1999 and 2000 NHIS surveys. The combined

1994 and 1995 NHIS-D is the most comprehensive survey of non-institutionalized persons with

disabilities ever conducted in the United States and is the first national survey to include persons with

disabilities of all ages. The analyses focus on the 3,076 sample members with mental retardation (MR)

and/or developmental disabilities (DD), and on the 12,078 adults and 1,536 children who have one or

more substantial functional limitations but who do not have MR or DD. The analyses build on earlier

research using the NHIS-D in which operational definitions for mental retardation, developmental

disabilities, and functional limitations were developed and used for estimating prevalence, demographics, and service use of persons with MR and/or DD. Data analysis topics include: (1) demographic,

functional, and health characteristics; (2) in-home services and supports; (3) access to health care; (4)

services, devices, and technology; (5) households with parents who have disabilities; and (6) social

roles and experiences of adults. In each of these areas, four disability groups are examined: those with

mental retardation only, those with developmental disabilities only, those with mental retardation and

developmental disabilities, and those with substantial functional limitations but not mental retardation

or developmental disabilities. Of particular interest is the comparison between working-age adults with

developmental disabilities and those with three or more functional limitations whose disabilities first

occurred in adulthood.
5-16 NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas

Field-Initiated Projects (FIPs)

New York

Utilization and Analysis of Census 2000 Data to Inform Disability

Advocacy and Employment Policy

Cornell University

Program on Employment and Disability

Ithaca, NY 14853

ajh29@cornell.edu

www.disabilitystatistics.org

Principal Investigator: Andrew J. Houtenville, PhD

Public Contact: 607/255-5702 (V); 607/255-2891 (TTY); Fax: 607/255-3274

Project Number: H133G020117

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Abstract: This project analyzes and disseminates disability employment statistics gleaned from the

long-form dataset of the 2000 U.S. Census. A unique feature of the statistical summary is the disaggregation of data at the state and, if possible, county level. The project generates a “user friendly” report

and web site designed for advocacy groups and other end users of disability employment statistics. The

web site is designed in a “question-and-answer” format, based on a model currently employed by

Cornell’s RRTC for Economic Research on Employment Policy. The project also analyses and disseminates Public Use Microdata Sample files, which allow the summary and reporting of data at the

state and local level. Research also includes testing of statistical models purporting to describe the

“disablement process” and barriers to employment.
NIDRR Program Directory FY 2003 - Association DisabilityResearch Areas 5-17

Field-Initiated Projects (FIPs)

South Carolina

A Six-Year Longitudinal Study of Community Integration, Subjective

Well-Being, and Health After Spinal Cord Injury: Relationship with

Gender, Race/Ethnicity, and Environmental Factors

Medical University of South Carolina

College of Health Professions

77 President Street

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD, 843/792-1337

Public Contact: Jennifer Coker, MPH, 843/792-2605; Fax: 843/792-0710

Project Number: H133G020218

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Theresa San Agustin MD

NIDRR Funding: FY 02 $149,734; FY 03 $149,941

Abstract: This longitudinal study identifies changes in quality of life and health outcomes over a sixyear period as a function of gender, race/ethnicity, and environmental factors. Follow-up data are

collected from 466 participants from three collaborating sites that include the Shepherd Center, Rancho

Los Amigos National Rehabilitation Center, and Craig Hospital. The same core outcome measures that

were used during the preliminary data collection in 1997-98 are being re-administered by phone.

Measures include the Craig Handicap Assessment Reporting Technique, the Older Adult Health and

Mood Questionnaire, the Reciprocal Support Scale, the Behavioral Risk Factor Surveillance Survey

and the Life Situation Questionnaire. In addition, newly developed measures are being used to identify

the relationship between environmental factors and adverse outcomes. These measures include the

Craig Hospital Inventory of Environmental Factors; Acculturation, Integration, Marginalization, and

Segregation; and the assimilation factor of the Community Integration Measure. A 2x4x2 longitudinal

factorial design is being used to analyze the data. A mediational model is being used to identify the

extent to which differences in environmental factors explain any associations of gender and raceethnicity with participation, subjective well-being, health behaviors, and health outcomes.
Knowledge Dissemination and Utilization

Dissemination and utilization are the tools through which to ensure that people with

disabilities become fully integrated and participating members of society. NIDRR’s

dissemination and utilization efforts ensure the widespread distribution, in usable

formats, of practical scientific and technological information generated by research,

demonstration, and related activities. NIDRR’s challenge is to reach diverse and

changing populations, to present research results in many different and accessible

formats, and to use technology appropriately.

Contents

Disability and Rehabilitation Research Projects .................................................................................... 3

Field-Initiated Projects (FIPs) .............................................................................................................. 15

ADA Technical Assistance Projects .................................................................................................... 17

Assistive Technology Technical Assistance Projects ........................................................................... 18

NIDRR Contracts ............................................................................................................................... 20

NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization 6-3

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Alabama

National Spinal Cord Injury Statistical Center

University of Alabama/Birmingham

SRC 515

1717 Sixth Avenue, South

Birmingham, AL 35249-7330

nscisc@uab.edu

www.spinalcord.uab.edu/show.asp?durki=24480

Principal Investigator: Michael J. DeVivo, DrPH, 205/934-3320

Public Contact: Vicki Farris, 205/934-5049; Fax: 205/934-2709

Project Number: H133A011201

Start Date: July 1, 2001

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $349,988; FY 02 $350,000; FY 03 $350,000

Abstract: The Statistical Center has the following objectives: (1) establish the appropriate IT system;

(2) train and provide technical assistance to the Model SCI centers; (3) communicate with NIDRR and

the centers to ensure quality of the items in the database; (4) demonstrate the capacity to conduct and

facilitate research from the database; (5) link to other related databases; (6) incorporate culturally

appropriate methods of data collection and dissemination, including culturally sensitive measurement

approaches; (7) demonstrate the capacity to provide technical assistance to the Model SCI centers and

other related projects regarding database development and maintenance.
6-4 NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

California

National Resource Center for Parents with Disabilities

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

tlg@lookingglass.org

www.lookingglass.org

Principal Investigator: Megan Kirshbaum, PhD; Paul Preston, PhD

Public Contact: Paul Preston, PhD, 510/848-1112 (V); 800/644-2666 (V); 800/804- 1616 (TTY);

Fax: 510/848-4445

Project Number: H133A980001

Start Date: April 1, 1998

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 98 $500,000; FY 99 $500,000; FY 00 $500,000; FY 01 $500,000; FY 02

$500,000; FY 03 (No-cost extension through 12/31/2003)

Abstract: The National Resource Center for Parents with Disabilities focuses on the 10.9 percent of

U.S. families with children in which one or both parents have a disability—nearly 9 million parents.

The Center provides: (1) accessible and disability-appropriate information regarding parenting with a

disability to parents, potential parents, disability advocates, and legal, medical, and social service

providers; (2) training to parents with disabilities, potential parents, and service providers; (3) technical

assistance that increases informed practice and informed decisions; (4) program consultation that

increases local and regional services that are accessible and disability-appropriate. To accomplish these

goals, project researchers: (1) consolidate and disseminate information and resources, (2) synthesize

and disseminate materials from other agencies and organizations, (3) develop and disseminate new

materials tailored to address the specific needs of parenting with disabilities and service providers, (4)

expand the national availability of training and technical assistance to parents with disabilities and

service providers, and (5) develop curricula to train future service providers. Parenting areas designated

as highest priority are: custody, pregnancy and birthing, adoption, adaptive parenting equipment, and

general parenting information. The project is staffed by nationally recognized experts regarding parents

with disabilities, the majority of whom are parents with disabilities or family members of parents with

disabilities.
NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization 6-5

Disability and Rehabilitation Research Projects

California

Ideas for the New Millennium

World Institute on Disability

510 - 16th Street, Suite 100

Oakland, CA 94612-1520

kathy@wid.org

www.wid.org

www.disabilityworld.org

Principal Investigator: Kathy Martinez, 510/251-4326

Public Contact: Jennifer Geagan, 510/251-4310; Fax: 510/763-4109

Project Number: H133A990006

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Eva M. Gavillán, EdD

NIDRR Funding: FY 99 $400,000; FY 00 $400,000; FY 01 $400,000; FY 02 $400,000; FY 03

$400,000

Abstract: The ideas for the new millennium project creates a productive international exchange of

information and expertise on disability and rehabilitation, connecting disability research and advocacy

leadership in ten target countries with their peers in the United States. At the heart of this exchange is

an online information system that captures innovation, links government officials, policy-makers,

disability leaders, rehabilitation specialists, researchers, and innovators in a lively exchange of ideas,

networks, resources, and contacts. This sustainable network of information and resources on substantive disability issues is available across professions, cultures, and communities. The issues critical to the

information exchanges are: (1) disability rights and independent living, (2) employment and entrepreneurial activity, (3) access and technology, (4) mass media images, and (5) influence through governance. Using a civil rights perspective, the project addresses disability policy, law, advocacy, research,

and related developments in the ten countries. The project systematically promotes international exchange, reports results, and analyzes their significance in consumer-friendly formats and forums,

including a comprehensive database, five annual symposia, as well as a bi-monthly webzine,

www.disabilityworld.org, in English and Spanish. The project collaborates with four disability-led

organizations with substantial international experience.
6-6 NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

California

Disability and Rehabilitation Research Project to Disseminate

Independent Living Research Information Through the Mass Media to

Persons with Disabilities

Center for an Accessible Society

Exploding Myths, Inc.

2980 Beech Street

San Diego, CA 92102

cjones@accessiblesociety.org

www.accessiblesociety.org

Principal Investigator: Cynthia Jones

Public Contact: 619/232-2727, ext. 111 (V); 619/234-3130 (TTY); Fax: 619/234-3155

Project Number: H133A980045

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 98 $299,991; FY 99 $299,994; FY 00 $299,988; FY 01 $299,996; FY 02

$299,992; FY 03 (No-cost extension through 3/31/2004)

Abstract: This project disseminates research information on independent living (IL) through the

popular mass media. Like many groups who rely on well-planned programs of media dissemination

involving media relations firms, this project hires and works proactively with a media relations firm

and selected researchers to obtain coverage of IL issues in the popular mass media. The goal is to

create the recognition that the target population and its issues require ongoing, in-depth coverage. The

project conducts a proactive “media watch” to identify opportunities to insert an IL perspective into

public debates on policy issues in the popular mass media. As part of that watch, the project establishes

a “rapid response” program to provide members of the popular mass media with resources among IL

researchers, and to generate a response from the IL community to stories that omit the IL perspective.

The project manages an interactive web site to provide information and resources about IL research to

members of the popular mass media, researchers, and consumers.
NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization 6-7

Disability and Rehabilitation Research Projects

Georgia

TECH CONNECTIONS: Improving the Utilization of Existing and

Emerging Rehabilitation Technology in the State Vocational

Rehabilitation Program

United Cerebral Palsy Associations, Inc.

490 Tenth Street Northwest

Atlanta, GA 30318

techconnections@crt.gatech.edu

www.techconnections.org

Principal Investigator: Anthony J. Langton, MS

Public Contact: 877/835-7335; 404/385-0633; Fax: 404/385-0641

Project Number: H133A980052

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 98 $499,970; FY 99 $500,000; FY 00 $499,978; FY 01 $499,962; FY 02

$499,960; FY 03 (No cost extension through 9/30/2004)

Abstract: TECH CONNECTIONS facilitates the use of rehabilitation technology in state VR programs. This customer-responsive, customer-driven, training, technical assistance, and dissemination

project features: (1) a multifaceted approach to training that builds capacity through new curricula and

new supporting materials that augment existing materials, for use by project-trained rehabilitation and

university staff; (2) regional training forums, topic-specific audio conferences, and satellite video

training; (3) individualized technical assistance and information about the AT, on a case-by-case basis,

for rehabilitation professionals and for their customers with disabilities; and (4) broad-based outreach

and dissemination to people who provide AT. Training includes an Internet-based discussion group

open to rehabilitation professionals, people with disabilities, and other interested parties and a

mentoring program pairing experienced technology users with rehabilitation professionals or people

with disabilities seeking AT. Additional methods of outreach include project announcements circulated

to rehabilitation, education, and disability Internet discussion lists; presentations at conferences and

workshops; a toll-free phone number; and an Internet-based newsletter. United Cerebral Palsy Association works in collaboration with the Center for Rehabilitation Technology and the Southeast Disability

and Business Technical Assistance Center.
6-8 NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

Massachusetts

Web Accessibility Initiative, Phase II

Massachusetts Institute of Technology

W3C Web Accessibility Initiative

MIT/LCS Room NE43-355

200 Technology Square

Cambridge, MA 02139

jbrewer@w3.org

www.w3.org/WAI

Principal Investigator: Tim Berners-Lee, 617/253-5702

Public Contact: Judy Brewer, 617/258-9741

Project Number: H133A000500

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $499,999; FY 01 $499,998; FY 02 $500,000; FY 03 $499,999

Abstract: The project addresses newly emerging accessibility issues in the web industry, and expands

implementation of existing web accessibility solutions. Activities include: (1) developing advanced

versions of WAI guidelines and techniques to cover advanced web technologies such as XML applications; (2) developing a superset of universal design guidelines by integrating device-accessibility issues

in 25 or more W3C specifications; (3) documenting techniques for accessibility features of W3C

specifications in appendices and example code; (4) expanding techniques for retrofitting and validating

conformance with WAI guidelines; (5) developing resource packages for accessibility of E-Commerce

and distance learning; (6) providing in-house technical assistance to industry on the design of accessible web sites and software; (7) providing and monitoring a liaison to research and development

projects that affect future web accessibility; and (8) providing technical assistance to research projects

to promote adoption of universal design approaches in development of new web technologies. Support

for the Phase I project enabled WAI to address cross-disability web accessibility issues successfully

through a broad range of activities. It has provided a forum where scores of organizations internationally have combined their efforts to improve the accessibility of the web. For tens of millions of Americans with visual, hearing, physical, or cognitive disabilities, web accessibility provides the key to the

information society: to the online commercial world, educational opportunity, employment opportunity,

workplace communication, government services, recreation, and more.
NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization 6-9

Disability and Rehabilitation Research Projects

New Jersey

Traumatic Brain Injury National Data Center

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

kwood@kmrrec.org

www.tbindc.org

Principal Investigator: Mitchell Rosenthal, PhD, 973/243-6971

Public Contact: Kenneth Wood, PhD, 973/243-6811; Fax: 973/243-6990

Project Number: H133A011403

Start Date: July 1, 2001

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 01 $348,187; FY 02 $348,133; FY 03 $348,064

Other funding: FY 03 $10,000 (NIDRR Supplement)

Abstract: Goals of this TBI National Data Center include: (1) data collection improvements through

development of an interactive web-based syllabus for the use of Traumatic Brain Injury Model Systems (TBIMS) staff, researchers and others that improves the quality and cost-effectiveness of data

collection efforts; (2) a new web site featuring a searchable TBI Model Systems Research and Publication Registry; (3) enhanced statistical and technical consultation services to streamline the database,

employ innovative statistical techniques to compensate for incomplete or missing data, make comparisons with other datasets, improve measurement tools and prediction models, and enhance analysis of

longitudinal data; (4) improved data collection methods based on the “focus group” feedback received

from the data collectors at the other centers, which include awareness and incorporation of techniques

designed to improve cultural sensitivity of data collection instruments and data collection methodologies used in the model systems; (5) consumer dissemination of the latest TBIMS research results

through a partnership with the Brain Injury Association of America (BIAA); (6) continued leadership

in TBIMS dissemination activities through Facts and Figures, TBIMS and BIAA web sites, NCDDR

dissemination programs, journal publications, and TBIMS conferences; (7) continued development of

policies that allow for public access to data, while protecting the confidentiality of subjects in the

database and incorporating the perspectives of both NIDRR and the TBIMS researchers and data

management teams; (8) collaboration with the NIDRR SCI and Burn Data Centers to develop advanced methods of database function, data acquisition, data quality assurance, and general Data Center

operations; (9) exploring feasibility of new projects with Center for Disease Control and other programs whose database have similar TBI populations; and (10) conducting site visits to each TBIMS to

assure the highest levels of data quality and database integrity.
6-10 NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

New York

Center for International Rehabilitation Research Information and

Exchange (CIRRIE)

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

515 Kimball Tower

Buffalo, NY 14214

ub-cirrie@buffalo.edu

cirrie.buffalo.edu

Principal Investigator: John Stone, PhD, 716/829-3141, ext. 125

Public Contact: Marcia E. Daumen, 716/829-3900, ext. 146; Fax: 716/829-2211

Project Number: H133A990010

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Eva M. Gavillán, EdD

NIDRR Funding: FY 99 $400,000; FY 00 $400,000; FY 01 $400,000; FY 02 $400,000; FY 03

$400,000

Abstract: The mission of this Center is to improve rehabilitation services by obtaining and disseminating information on international rehabilitation research and practices. CIRRIE has four primary objectives: (1) develop and maintain an international research database, searchable from an accessible web

site and organized according to the major types of rehabilitation research, as delineated in the NIDRR

Long-Range Plan; (2) assist grantees of the Office of Special Education and Rehabilitation Services

(OSERS) to establish an international component within their domestic conferences by facilitating and

subsidizing participation by international experts and involve U.S. experts in international conferences;

(3) conduct an international exchange of research and technical assistance experts based on requests

from rehabilitation research centers in the U.S. and other countries; and (4) disseminate information to

rehabilitation service providers on the cultural issues relevant to meeting the needs of recent immigrants. Publications include monographs addressing the relevant cultural issues for the top ten countries

of origin of foreign- born people in the U.S. The monographs are based on a model of the service

provider as a “culture broker,” with the first monograph in the series addressing the theory of culture

brokering and its relevance to rehabilitation practice. A workshop on this topic is also available.
NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization 6-11

Disability and Rehabilitation Research Projects

New York

National Resource Center on Supported Living and Choice for People

with Mental Retardation and Developmental Disabilities

Syracuse University

Center on Human Policy

805 South Crouse Avenue, Room 101

Syracuse, NY 13244-2280

thechp@sued.syr.edu

soeweb.syr.edu/thechp

Principal Investigator: Steven J. Taylor, PhD, 315/443-3851

Public Contact: Bonnie Shoultz, Associate Director; Rachael A. Zubal-Ruggieri, Information

Coordinator, 800/894-0826 (V); 315/443-3851 (V); 315/443-4355 (TTY); Fax: 315/443-4338

Project Number: H133A990001

Start Date: January 30, 1999

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 99 $400,000; FY 00 $400,000; FY 01 $400,000; FY 02 $400,000; FY 03

$400,000

Abstract: This project conducts information dissemination, training, and technical assistance on

community inclusion, with a specific focus on supported living and choice. The Center identifies and

documents innovative policies and practices for home ownership, self-directed support services, selfdetermination, self-advocacy, and community participation. Activities include the preparation of

information materials for direct support staff, a national survey of state funding for supported living,

and increased efforts to address the needs of historically underrepresented groups. The project maintains an information clearinghouse on supported living and choice and disseminates resource material

targeted to people with developmental disabilities, family members, professionals, direct services staff,

policy-makers, and providers. It offers assistance and support to Self Advocates Becoming Empowered, state and local providers, developmental disability councils, and protection and advocacy agencies.
6-12 NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

Texas

National Center for the Dissemination of Disability Research (NCDDR)

Southwest Educational Development Laboratory

211 East Seventh Street, Suite 400

Austin, TX 78701-3281

lharris@sedl.org

www.ncddr.org

Principal Investigator: John Westbrook, PhD

Public Contact: Lin Harris, Information Assistant, 800/266-1832 (V/TTY); Fax: 512/476-2286

Project Number: H133A990008

Start Date: September 30, 1999

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 99 $750,000; FY 00 $750,000; FY 01 $750,000; FY 02 $750,000; FY 03

$750,000

Abstract: The goal of the National Center for the Dissemination of Disability Research (NCDDR) is

to promote the utilization of research results developed through NIDRR grants/contracts. Major areas

of work of the NCDDR include: (1) Research–designed to collect information that assists in identifying the needs and most likely strategies that assist in matching dissemination practices with intended

user audiences. Activities include conducting annual surveys, focus groups, surveys, and annual

reporting of state-of-the-art information about NIDRR grantees’ dissemination successes. (2) Demonstration–conducted to determine the effectiveness of new strategies and approaches in achieving

intended dissemination and utilization outcomes. Activities include developing and using innovative

web-based mechanisms, increasing common portal access to substantive English and Spanish language

resources of grantees, and developing outreach strategies for under-represented audiences. (3) Dissemination and Utilization–implemented not to support the simple distribution of materials and other resources but rather the use of research outcomes in meaningful ways by those that can most benefit

from their use. Activities include production of print and web-based informational products, networking of grantees to maximize outreach impact, and developing networks with a variety of research

stakeholder groups for information and strategy exchanges. (4) Technical Assistance–provided to

NIDRR grantees to build understanding, skills, and resources related to the dissemination and utilization of their disability research outcomes. Activities include providing onsite and offsite assistance in

planning effective dissemination efforts, providing direct assistance to grantees with targeted dissemination efforts, and assisting in designing evaluation strategies to measure dissemination and utilization

outcomes.
NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization 6-13

Disability and Rehabilitation Research Projects

Texas

Research Utilization Support and Help (RUSH) Project

Southwest Educational Development Laboratory

211 East Seventh Street, Suite 448

Austin, TX 78701-3253

mlinder@sedl.org

www.researchutilization.org

Principal Investigator: John Westbrook, PhD

Public Contact: Mark Linder, Communications Assistant, 800/761-7874 (V/TTY); Fax: 512/476-

2286

Project Number: H133A031402

Start Date: June 1, 2003

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 03 $350,000

Abstract: The RUSH project develops and tests models for increasing the effective use of NIDRR

research results. The RUSH Project intends to assess utilization successes in terms of benefits produced for intended user audiences including: people with disabilities and their families, disability

researchers, and disability service providers, among others. The goal is to expand awareness, strategies, and evaluation of knowledge utilization outcomes among NIDRR-supported researchers in order

to increase access and use of research results by those who can benefit the most from them. The

objectives for the RUSH Project are: (1) to assess the use of and obstacles to the dissemination/utilization of NIDRR-supported disability research by a wide range of potential target audiences; (2) to

develop a variety of strategies and approaches designed to accommodate differing topics of disability

research information and diverse target audiences; (3) to demonstrate a variety of new strategies and

approaches to improve/achieve utilization outcomes of disability research findings; (4) to disseminate

information about knowledge utilization models and their associated effectiveness by topic, target

audience, and level of knowledge transfer needed in order to increase the use of NIDRR grantees’

research outcomes; (5) to provide new and current NIDRR researchers with information they can use

to strengthen their dissemination and utilization approaches; and (6) to provide technical assistance to

NIDRR researchers to build understanding, skills, and resources in developing, implementing, and

evaluating knowledge utilization models within NIDRR project designs.
6-14 NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

Texas

Model Spinal Cord Injury Systems Dissemination Center

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Street

Houston, TX 77030-3405

khart@bcm.tmc.edu

www.mscisdisseminationcenter.org

Principal Investigator: Karen A. Hart, PhD

Public Contact: 713/797-5946; Fax: 713/797-5982

Project Number: H133A011501

Start Date: September 1, 2001

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000

Abstract: The Model Spinal Cord Injury Systems (MSCIS) Dissemination Center is a collaborative

effort that includes the NIDRR-funded Model Spinal Cord Injury Centers and SCI collaborative

research projects. The Center provides information about MSCIS research and publications to inquirers

and model system staff members via the Internet, the telephone, and surface mail. Overall objectives of

the project are: (1) documenting the scientific productivity of the Model SCI Centers and Collaborative

Research Projects and providing a history of the Model Centers’ publications; (2) verifying that the

publications are peer-reviewed by downloading citations from Medline, Current Contents, Cumulative

Index to Nursing and Allied Health Literature (CINAHL), and Psychology Literature (PsychLit); (3)

ensuring the accuracy of the citations through verification by Center and author semi-annually; (4)

maintaining, on a semi-annual basis, the listing of web-accessible citations hosted on web site of the

Regional Spinal Cord Injury Center of the Delaware Valley at Thomas Jefferson University Hospital in

Philadelphia; (5) documenting and verifying the accuracy and currency of published book chapters and

textbooks; (6) storing information electronically in Reference Manager in a format that can be uploaded to Reference Web Poster on the Center’s web site; (7) gathering structured data from each of

the Model SCI Centers and Collaborative Research Projects that describes the educational products

produced and the presentations given; (8) classifying the educational products and presentations

produced by the Model SCI Centers and Collaborative Research Projects to provide a variety of

accurate retrieval options for interested constituents; (9) developing a data storage system that facilitates

uploads into the program’s web site in accessible format for interested constituents such as individuals

with SCI, organizations, NIDRR, NCDRR, NARIC, the Model SCI Centers, libraries, rehabilitation

facilities, professionals, and students; (10) disseminating efficiently and effectively to the greatest

number of constituents the publications, educational products, and presentations produced by the

Model SCI Centers and the Collaborative Research Projects as an aggregate representation of this

NIDRR program’s contribution to the field of SCI; (11) providing a mechanism for NCDRR and

NARIC to verify that they have complete and accurate information about all the Model SCI Centers

and their accomplishments so that NCDDR and NARIC can achieve their dissemination objectives;

and (12) reaching the greatest number of individuals possible with information and education about

SCI by efficient use of NIDRR-funded resources and personnel.
NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization 6-15

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

Colorado

Disability Law Knowledge Management System: A One-Stop

Clearinghouse for Disability Information

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

info@mtc-inc.com

Principal Investigator: Robert H. Gattis, Jr., 719/578-8448

Public Contact: 719/444-0252; Fax: 719/444-0269

Project Number: H133G000221

Start Date: June 1, 2000

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $149,998; FY 01 $149,977; FY 02 $149,926; FY 03 (No-cost extension

through 12/31/2003)

Abstract: The Disability Law Knowledge Management System (KMS) project develops a comprehensive knowledge dissemination and utilization repository of disability civil rights information in a

web-based helpdesk format. The system builds on research conducted for the Rocky Mountain Disability and Business Technical Assistance Center (DBTAC) project, in which a prototype knowledge

management system was developed and tested with information specialists from NIDRR-funded

DBTACs. The prototype included a portion of the material available on the American with Disabilities

Act. The Disability KMS project expands on the earlier work in two important areas. It vastly increases the quantity of information in the knowledge base, and it makes the work of information

specialists more available to the general public. The project includes a comprehensive evaluation of the

resulting system.
6-16 NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization

Field-Initiated Projects (FIPs)

North Carolina

Exploring Universal Design: Developing and Disseminating Universal

Design Education Material Online

North Carolina State University

Center for Universal Design

104 Brooks Hall, 50 Pullen Road

Campus Box 8613

Raleigh, NC 27695-8613

molly_story@ncsu.edu

www.udeducation.org

Principal Investigator: Molly Story

Public Contact: 707/578-6839 (V/TTY); Fax: 707/578-9435

Project Number: H133G000025

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $149,967; FY 01 $149,721; FY 02 $149,789; FY 03 (No-cost extension

through 9/30/2004)

Abstract: This project develops an interactive web site of universal design instructional materials,

project ideas, visuals, teaching strategies, and resources for use by design faculty, students, practicing

designers, and user-experts. These growing audiences require sophisticated instructional materials,

available through an efficient and timely vehicle for communication and dissemination. Objectives

include: (1) allowing flexibility and discussion in how projects, visuals, and instructional materials are

used in design education; (2) building an infusion model of teaching rather than a prescriptive, singular

curriculum approach; and (3) promoting the site internationally to design faculty, practitioners, and

others interested in universal design education. Partners in the project are the Center for Universal

Design at North Carolina State University, the IDEA Center/Center for Virtual Architecture at the State

University of New York at Buffalo, and Elaine Ostroff of the Global Universal Design Educators

Network.
NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization 6-17

ADA Technical Assistance Projects ADA Technical Assistance Projects

Washington

National Center on Accessible Information Technology in Education

University of Washington

Center on Human Development and Disability

Box 357920

Seattle, WA 98195-7920

accessit@u.washington.edu

www.washington.edu/accessit

Principal Investigator: Kurt Johnson, PhD, 206/543-3677

Public Contact: Alan J. Knue, 866/968-2223 (V/TTY); 206/616-2223 (V); 866/866- 0162 (TTY);

Fax: 206/543-4779

Project Number: H133D010306

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $700,000; FY 02 $700,000; FY 03 $700,000

Abstract: This program, working nationwide with NIDRR-funded Disability Business and Technical

Assistance Centers (DBTACs), serves to increase the access of individuals with disabilities to information technology in educational institutions at all academic levels nationwide. The Center facilitates the

implementation of policies, procedures, and practices that promote the procurement and use by educational entities of accessible information technology that applies universal design principles and meets

recognized standards. By providing training, support, dissemination materials, and technical assistance

to the DBTACs, AccessIT utilizes and builds on this existing infrastructure for information dissemination and technical support. Additionally, information and training to educational institutions is provided

through the Center’s website and presentations at educational events. The website includes accessibility checklists, best practices, knowledge base articles, links to resources, and case studies, tailored to

applications of information technology in education. The Center also conducts training sessions and

presentations at major educational, disability, and technology conferences to inform target audiences

about how to make information technology in education accessible to individuals with disabilities and

of the availability of resources from AccessIT and of technical assistance from the DBTACs. Leading

the efforts of the Center are the University of Washington’s Center for Technology and Disability

Studies and Disabilities, Opportunities, Internetworking and Technology. NIDRR-funded Rehabilitation Engineering Research Centers and the IT Technical Assistance and Training Center, DBTACs,

project EASI (Equal Access to Software and Information), and Microsoft Corporation are among its

many partners.
6-18 NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization

Assistive Technology Technical Assistance Projects Assistive Technology Technical Assistance Projects

Georgia

assitivetech.net - Internet Site on Assistive Technology

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street

Atlanta, GA 30318

beth.bryant@arch.gatech.edu

www.assistivetech.net

Principal Investigator: Elizabeth A. Bryant, 404/894-0254

Public Contact: Robert Todd, Project Director, 404/894-6895; 800/726-9119 (V/TTY); Fax: 404/

894-9320

Project Number: H224B020002

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 02 $250,000; FY 03 $250,000

Abstract: The National Assistive Technology Internet Site (www.assistivetech.net) increases the

availability of, and ease of access to, information about assistive technology (AT), services, and resources available for people with disabilities. The web site provides 24-hour access to AT information

for those with Internet connectivity, and a toll-free telephone number for those without it. The site

serves all people but focuses particularly on people with disabilities, their families, service providers,

educators, and employers. The assistivetech.net web site features: access to information about more

than 15,500 AT devices, innovative automated intelligent agents to assist with AT definition and

selection, vendor data entry interface to enable vendor involvement in maintaining AT information, and

over 1,000 electronic links to appropriate and accessible public and private resources and information

related to all types of disabilities, including low-level reading skills. Enhancements to the site include:

natural language search interface to enhance site usability, a forum for user-submitted accommodations

and strategies, and improved, easier-to-use access to AT product information.
NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization 6-19

Assistive Technology Technical Assistance Projects

New York

National Assistive Technology Advocacy Project

Neighborhood Legal Services, Inc.

Disability Law Unit

Ellicott Square Building

295 Main Street, Room 495

Buffalo, NY 14203

atproject@nls.org

www.nls.org

Principal Investigator: James R. Sheldon Jr., Esq.

Public Contact: 716/847-0650; Fax: 716/847-0227

Project Number: H224B020004

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 02 $160,000; FY 03 $160,000

Abstract: This project provides management- and advocacy-related technical assistance to attorneys

and advocates who work for the 56 Protection and Advocacy for Assistive Technology (P&AAT)

projects, as well other public entities with an interest in the funding of AT. Advocacy-related training is

provided through an annual project conference; sessions at the annual National Association of Protection and Advocacy Systems (NAPAS) conference; sessions at statewide or regional conferences

sponsored by protection and advocacy programs or State AT Act projects; and distance training events

on special education, funding of work-related AT, and other topics to be determined. Managementrelated training is provided at four annual training events sponsored by NAPAS. The project prepares

publications on the funding of AT through a variety of funding sources and acts as a clearinghouse for

funding-related documents through in- house resource libraries containing administrative hearing

decisions; a wide range of court-related documents, including briefs and complaints; and model policies, procedures, and practices for delivery of AT in special education systems. A national AT email list

provides a low-cost, efficient way to communicate with a nationwide network of AT advocates. The

project also maintains a web site containing information relative to the funding of AT, including many

of the project’s publications and links to other web-based resources to support AT advocacy efforts.
6-20 NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization

NIDRR Contracts NIDRR Contracts

Maryland

National Rehabilitation Information Center (NARIC)

HeiTech Services, Inc.

4200 Forbes Boulevard, Suite 202

Lanham, MD 20706

naricinfo@heitechservices.com

www.naric.com

Principal Investigator: Mark X. Odum

Public Contact: Information Specialists, 800/346-2742 (V); 301/459-5984 (TTY); 301/459-5900 (V);

Fax: 301/459-4263

Project Number: ED-02-CO-002

Start Date: January 1, 2002

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $740,000; FY 03 $695,972

Abstract: The National Rehabilitation Information Center (NARIC) maintains a research library of

more than 60,000 documents and responds to a wide range of information requests, providing facts

and referral, database searches, and document delivery. Through telephone information referral and the

Internet, NARIC disseminates information gathered from NIDRR-funded projects, other federal

programs, and from journals, periodicals, newsletters, films, and videotapes. NARIC maintains

REHABDATA, a bibliographic database on rehabilitation and disability issues, both in-house and on

the Internet. Users are served by telephone, mail, electronic communications, or in person. NARIC

also prepares and publishes the annual NIDRR Program Directory, available in database format from

NARIC’s web site.
NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization 6-21

NIDRR Contracts

Maryland

ABLEDATA Database Program

ORC Macro

8630 Fenton Street, Suite 930

Silver Spring, MD 20910

abledata@orcmacro.com

www.abledata.com

Principal Investigator: Katherine Belknap, 301/608-8998, ext. 100

Public Contact: Katherine Belknap, 800/227-0216 (V); 301/608-8998 (V); 301/608- 8912 (TTY);

Fax: 301/608-8958

Project Number: ED-02-000128

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $516,829; FY 03 $589,408

Abstract: This project maintains and expands the ABLEDATA database, develops information and

referral services that are responsive to the special technology product needs of consumers and professionals, and provides the data to major dissemination points to ensure wide distribution and availability

of the information to all who need it. The ABLEDATA database contains information on more than

26,000 commercially produced and custom-made assistive devices. Requests for information are

answered via telephone, mail, electronic communications, or in person.
6-22 NIDRR Program Directory Fy 2003 - Knowledge Dissemination and Utilization

NIDRR Contracts

North Carolina

Technical Support for Data Collection Development: Implementation of

NIDRR’s Web- Based Performance Reporting System Data Collection

RTI International

Center for Research in Education

3040 Cornwallis Road

P.O. Box 12194

Research Triangle Park, NC 27709-2194

cat@rti.org

Principal Investigator: Christene A. Tashjian

Public Contact: 919/541-6128; Fax: 919/541-5849

Project Number: ED-01-CO-0052

Start Date: April 18, 2002

Length: 36 months

NIDRR Officer: Mary Darnell

NIDRR Funding: FY 02 $175,000; FY 03 $175,000

Abstract: This project ensures the continuation of technical assistance activities for NIDRR staff and

grantees of 8 programs (ARRT, D&U, DBTAC, DRRP, FIP, Model Systems, RERC, RRTC) using a

web-based reporting system for collection of annual performance information. RTI staff, in consultation with NIDRR, developed the system and is responsible for ongoing system maintenance and

implementation. The system meets Section 508 accessiblity requirements; access is restricted to current

grantees who are assigned unique passwords they must enter (along with their federal award number)

to use the reporting system. RTI staff assist grantees with technical and programmatic questions they

may have while inputing their annual data into the system. RTI is responsible for updating programspecific instruction manuals, reviewing the technical assistance logs to suggest possible changes to the

system to make it more ‘user- friendly’, and providing NIDRR with quarterly updates of the data base.

Project staff conduct periodic briefings for NIDRR staff on the individual grant programs. Based on

NIDRR’s specifications, RTI staff will analyze grantee data and submit a program performance report.
ADA Technical Assistance Programs

The Americans with Disabilities Act (ADA) opens more opportunities for persons

with disabilities. It also places certain responsibilities on employers, transit and

communication systems, state and local governments, and public accommodations.

To assist covered parties to understand and comply with the ADA, NIDRR has

funded a network of grantees to provide information, training, and technical

assistance to businesses and agencies with duties and responsibilities under the ADA.

Contents

ADA Technical Assistance Projects ...................................................................................................... 3

NIDRR Program Directory FY 2003 - ADA Technical Assistance Projects 7-3

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region I - CT, ME, MA, NH, RI, and VT

New England ADA Center and Universal Design in Educational IT

(Disability and Business Technical Assistance Center - Region I)

Adaptive Environments Center, Inc.

374 Congress Street, Suite 301

Boston, MA 02210-1807

oharrison@adaptiveenvironments.org; vfletcher@adaptiveenvironments.org

www.adaptiveenvironments.org

Principal Investigator: Valerie Fletcher, 617/695-1225, ext. 26

Public Contact: Oce Harrison, EdD, Project Director, 800/949-4232 (V/TTY in CT, ME, MA, NH,

RI, and VT); 617/695-1225, ext. 27 (V/TTY); Fax: 617/482-8099

Project Number: H133D010211

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $850,000; FY 02 $850,000; FY 03 $850,000

Abstract: The New England DBTAC provides technical assistance, training, and information dissemination for Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. The new

grantee retains relationships with previously contracted state affiliates, the statewide coalitions, the

annual incentive grants, and the newsletter. Groups with rights or responsibilities under the ADA that

are targeted for expanded outreach include self-advocacy organizations and the ARC; libraries; human

resources trade groups; the hospitality industry, including visitor and convention bureaus; schools; and

health care professionals. Annual regional training initiatives include day-long workshops for state,

municipal, and county ADA coordinators; half-day trainings for centers for independent living; training

for architects on ADA updates; outreach and training in minority and immigrant communities both to

people with disabilities and business owners; and voter accessibility training. Implementation of the

education-based IT component of the project includes: (1) establishing regional linkages to educational

entities for cooperation/collaboration; (2) establishing the capacity in each state to coordinate and build

skill, using resources of state organizations and the state infrastructure to reach large audiences through

familiar, local methods; (3) training using a variety of distance learning techniques tailored to target

audiences; (4) convening a collaborative conference on universal design on the web with the Rhode

Island School of Design; (5) running a public awareness campaign that puts the issue of universal

design on the educational IT agenda; and (6) identifying best practices in the region to be written up as

case studies each year.
7-4 NIDRR Program Directory FY 2003 - ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region II - NJ, NY, PR, and VI

Northeast Disability and Business Technical Assistance Center -

Region II

Cornell University

Program on Employment and Disability

School of Industrial and Labor Relations

107 ILR Extension Building

Ithaca, NY 14853-3901

northeastada@cornell.edu

www.northeastada.org

Principal Investigator: Susanne Bruyère, PhD, 607/255-7727

Public Contact: Andrea Haenlin-Mott, Project Director, 800/949-4232 (V/TTY, in NJ, NY, PR, and

VI); 607/255-8348 (V); 607/255-6686 (TTY); Fax: 607/255-2763

Project Number: H133D010205

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,100,000; FY 02 $1,100,000; FY 03 $1,100,000

Abstract: The Northeast ADA & Accessible Information Technology Center provides technical

assistance, training, and information dissemination for New Jersey, New York, Puerto Rico, and the

Virgin Islands on the ADA and accessible information technology. A new focus for the project is

information, training, and technical assistance to educational entities in Region II, on the procurement

and use of accessible information technology for students and employees with disabilities. Services are

comprehensive, involving effective use of existing networks and collaborations with regional partners

and organizations that currently deliver services to educational organizations, parent organizations,

disability advocacy organizations, employers, labor unions, and state and local government. The

Program on Employment and Disability at Cornell University’s School of Industrial and Labor Relations takes the lead in a regional collaborative effort that includes the following partners: Office of the

Advocate for Persons with Disabilities for New York state; AccessPoint Solutions in New Jersey; the

Department of Architecture and Center for Assistive Technology at the State University of New York

(SUNY) at Buffalo; the Assistive Technology Project at the University of Puerto Rico; the University

Affiliated Program at the University of the Virgin Islands; and various local agencies and organizations.
NIDRR Program Directory FY 2003 - ADA Technical Assistance Projects 7-5

ADA Technical Assistance Projects

Region III - DC, DE, MD, PA, VA, and WV

Mid-Atlantic Disability Business Technical Assistance Center -

Region III

TransCen, Inc.

451 Hungerford Drive, Suite 607

Rockville, MD 20850-4151

adainfo@transcen.org

www.adainfo.org

Principal Investigator: Marian S. Vessels, Project Director

Public Contact: 800/949-4232 (V/TTY, in DC, DE, MD, PA, VA, and WV); 301/217- 0124 (V/

TTY); Fax: 301/217-0754

Project Number: H133D010212

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,099,998; FY 02 $1,099,998; FY 03 $1,099,998

Abstract: The Mid-Atlantic DBTAC provides technical assistance, training, and information dissemination for Delaware, the District of Columbia, Maryland, Pennsylvania, Virginia, and West Virginia.

Activities are organized under two major goals: (1) provide technical assistance, training, and information dissemination about the ADA; and (2) provide technical assistance, training, and information

dissemination about accessible education-based IT. Individual activities to meet these goals and project

objectives are designed to build capacity among State and local agencies, including centers for independent living, so that the Center’s impact and effectiveness is maximized. Approximately 20,000

individuals and organizations are directly impacted through project activities each year.
7-6 NIDRR Program Directory FY 2003 - ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region IV - AL, FL, GA, KY, MS, NC, SC, and TN

Southeast Disability Business Technical Assistance Center - Region IV

Georgia Tech Research Corporation

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street

Atlanta, GA 30318

sedbtacproject@catea.org

www.sedbtac.org

Principal Investigator: Shelley Kaplan, Project Director, 404/385-0636

Public Contact: 800/949-4232 (V/TTY, in AL, FL, GA, KY, MS, NC, SC, and TN); 404/385-0636

(V/TTY); Fax: 404/385-0641

Project Number: H133D010207

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,450,000; FY 02 $1,450,000; FY 03 $1,450,000

Abstract: The Southeast DBTAC provides technical assistance, training, and information dissemination for Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, and

Tennessee. The project: (1) provides expert technical assistance to promote voluntary and effective

implementation of the ADA among entities with rights and responsibilities; (2) facilitates widespread

use, particularly in educational entities, of accessible and usable electronic and IT; (3) fosters and

facilitates regional capacity-building by cultivating collaborations between the regional Educational

Leadership Team and the existing ADA Leadership Network; (4) expands training programs by

incorporating enhanced distance learning methods, including teleconferences, web-based training, and

electronic discussions, that are designed in a fully accessible and useful manner; and (5) identifies and

disseminates “Best Practices” in employment and IT in order to encourage and support replication. To

build on its ten-year history of regional capacity building, the DBTAC: (1) strengthens its ADA

Leadership Network of eight state and 80 local affiliates; (2) shares expertise about IT through the

Georgia Tech Center for Assistive Technology and Environmental Access (CATEA)’s Information

Technology Technical Assistance and Training Center (ITTATC) project; and (3) facilitates accessible

education-based IT across the educational spectrum via the newly-established Educational Leadership

Team.
NIDRR Program Directory FY 2003 - ADA Technical Assistance Projects 7-7

ADA Technical Assistance Projects

Region V - IL, IN, MI, MN, OH, and WI

Great Lakes Disability Business Technical Assistance Center - Region V

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Room 405

Chicago, IL 60608-6904

gldbtac@uic.edu

www.adagreatlakes.org

Principal Investigator: Robin A. Jones, Project Director, 312/996-1059

Public Contact: 800/949-4232 (V/TTY, in IL, IN, MI, MN, OH, and WI); 312/413- 1407 (V/TTY);

Fax: 312/413-1856

Project Number: H133D010203

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,450,000; FY 02 $1,478,750; FY 03 $1,450,000

Abstract: The Great Lakes DBTAC provides technical assistance, training, and information dissemination for Illinois, Indiana, Michigan, Minnesota, Ohio, and Wisconsin. The project’s audiences

include business, government, and education organizations and individuals with disabilities and their

families. The Center assists these audiences in understanding their rights and responsibilities under the

ADA. For example, technical assistance and training are provided to educational entities regarding

their responsibility to ensure that the IT they purchase and use is accessible to and usable by individuals with disabilities. The aim is that within the education system administrators, educators, staff, students, and parents have full and equal access to programs, services, and information used or disseminated through a variety of information technologies. The Center programs and services are coordinated

through a network of collaborators at the local, state, and regional level representing business, government, education entities and people with disabilities. Services and programs include direct technical

assistance, training, and materials dissemination utilizing a variety of methods and strategies.
7-8 NIDRR Program Directory FY 2003 - ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region VI - AR, LA, NM, OK, and TX

Disability Law Resource Project (Southwest Disability Business

Technical Assistance Center - Region VI)

The Institute for Rehabilitation and Research (TIRR)

Independent Living Research Utilization (ILRU)

2323 South Shepherd Boulevard, Suite 1000

Houston, TX 77019-7024

dlrp@ilru.org

www.dlrp.org

Principal Investigator: Lex Frieden, 713/797-5283

Public Contact: Wendy Wilkinson, Project Director, 800/949-4232 (V/TTY, in AR, LA, NM, OK,

and TX); 713/520-0232 (V); 713/520-5136 (TTY); Fax: 713/520-5785

Project Number: H133D010210

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,099,997; FY 02 $1,099,997; FY 03 $1,099,997

Abstract: The Disability Law Resource Project (DLRP), based at ILRU, is one of ten regional Disability and Business Technical Assistance Centers that offers expert technical assistance, training, and

material dissemination to Arkansas, Louisiana, New Mexico, Oklahoma, and Texas. Information and

training is provided on the ADA, information technology, and other disability related laws. DLRP

proactively informs and educates a diverse audience that includes educational, business, and governmental entities. The DLRP collaborates with an affiliate in each of the five states, as well as disability

organizations, to expand its outreach throughout the region.
NIDRR Program Directory FY 2003 - ADA Technical Assistance Projects 7-9

ADA Technical Assistance Projects

Region VII - IA, KS, MO, and NE

Great Plains ADA and Information Technology Center - Region VII

University of Missouri/Columbia

100 Corporate Lake Drive

Columbia, MO 65203

ada@missouri.edu

www.adaproject.org

Principal Investigator: Jim de Jong, Project Director, 573/882-3600 (V)

Public Contact: 800/949-4232 (V/TTY, in IA, KS, MO, and NE); 573/882-3600 (V/TTY); Fax: 573/

884-4925

Project Number: H133D010201

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $850,000; FY 02 $850,000; FY 03 $850,000

Abstract: The Great Plains DBTAC provides technical assistance, training, and information dissemination for Iowa, Kansas, Missouri, and Nebraska. In order to facilitate successful implementation of

the ADA and accessible education-based IT in Region VII, the project and its collaborating partners:

(1) provide training and technical assistance, and disseminate materials to individuals and entities with

responsibilities and rights under the ADA regarding the ADA’s requirements as well as developments

in case law, policy, and implementation; (2) increase the capacity of organizations at the state and local

level, including centers for independent living (CILs), to provide training on the ADA; (3) provide

training and technical assistance, and disseminate material on the legal obligations of educational

entities to provide accessible IT to students and employees; (4) provide information to CILs, parent

training information centers, and regional resource centers on accessible education- based IT; (5)

increase the capacity of organizations at the state and local level, including CILs, to provide technical

assistance; (6) provide technical assistance to educational entities to enable them to conduct selfevaluations on the accessibility of their IT; and (7) provide technical assistance, either directly or

through referral, regarding how to make existing IT accessible and ensure that new IT acquisitions are

accessible.
7-10 NIDRR Program Directory FY 2003 - ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region VIII - CO, MT, ND, SD, UT, and WY

Rocky Mountain Disability Business Technical Assistance Center -

Region VIII

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

RegionVIII@mtc-inc.com

www.adainformation.org

Principal Investigator: Robert H. Gattis, Jr., Project Director, 719/444-0252

Public Contact: 800/949-4232 (V/TTY, in CO, MT, ND, SD, UT, and WY); 719/444- 0268 (V/

TTY); Fax: 719/444-0269

Project Number: H133D010004

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $849,716; FY 02 $849,157; FY 03 $849,576

Abstract: The Rocky Mountain DBTAC provides technical assistance, training, and information

dissemination for Colorado, Montana, North Dakota, South Dakota, Utah, and Wyoming. The project

builds the capacity for reaching every individual, business, public entity, and educational institution

with training, materials dissemination, and technical assistance on the ADA and educational-based IT

accessibility. A comprehensive program expands a collaborative network consisting of key agencies

and organizations throughout the region. This project also operates and maintains the ADA Impact

Measurement System (AIMS), a web-based system that collects customer survey data. This system

allows the ten regional DBTACs to evaluate the outcomes of the DBTAC program quantitatively.
NIDRR Program Directory FY 2003 - ADA Technical Assistance Projects 7-11

ADA Technical Assistance Projects

Region IX - AZ, CA, HI, NV, and the Pacific Basin

Pacific ADA & IT Center (Pacific DBTAC)-Region IX

Public Health Institute

555 12th street

Suite 130

Oakland, CA 94607-4046

adatech@pdbtac.com

www.pacdbtac.org

Principal Investigator: Erica C. Jones, Project Director, 510/285-5600 (V/TTY)

Public Contact: 800/949-4232 (V/TTY, in AZ, CA, HI, NV, and the Pacific Basin); 510/285-5600

(V/TTY); Fax: 510/285-5614

Project Number: H133D010209

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,450,000; FY 02 $1,450,000; FY 03 $1,450,000

Abstract: The Pacific DBTAC provides technical assistance, training, and information dissemination

for Arizona, California, Hawaii, Nevada, and the Pacific Basin. The latest funding cycle includes a

series of innovative initiatives and approaches to enhance compliance with ADA rules and regulations.

There is also an integrated action plan to enhance the availability of accessible IT equipment in Federal

Region IX, primarily through a focus on educational institutions as key sites for adopting the principles

of Section 508, and for ensuring full access to IT for young people with disabilities. The Pacific

DBTAC’s interdisciplinary, multilevel management strategy ensures that all project objectives are

tracked and attained and that Center services are fully integrated and delivered in an effective, costefficient, and accessible manner. The DBTAC provides quality training, federally approved materials,

and technical assistance services to requesters who seek support, advice, and information and it conducts proactive strategic outreach and education services that promote adherence to ADA regulations

and principles at all levels of society. Education-Based Information Technology, being a key focus,

uses best practices to promote utilization throughout school systems.
7-12 NIDRR Program Directory FY 2003 - ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region X - AK, ID, OR, and WA

Northwest ADA/IT Center (Disability Business Technical Assistance

Center - Region X)

Oregon Health and Science University

Oregon Institute on Disability and Development

P.O. Box 574

Portland, OR 97207-0574

nwada@ohsu.edu

www.nwada.org

Principal Investigator: Charles Drum, JD, PhD, 503/494-8047

Public Contact: Lynnae Ruttledge, Project Director, 800/949-4232 (AK, ID, OR, and WA only); 503/

494-6747; Fax: 503/494-6868

Project Number: H133D010002

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $850,000; FY 02 $850,000; FY 03 $850,000

Abstract: The Northwest DBTAC/Information Technology Center provides technical assistance,

training, and information dissemination for Alaska, Idaho, Oregon, and Washington. Audiences

include people with disabilities, state and local governments, and businesses in Region X. In addition

to the Americans with Disabilities Act (ADA) and other state and federal disability laws and regulations, the Center also provides technical assistance, training, and dissemination to educational entities

regarding “best practices” information on accessible IT. The sources of such information include the

new National Center on Accessible Education-Based Information Technology.
NIDRR Program Directory FY 2003 - ADA Technical Assistance Projects 7-13

ADA Technical Assistance Projects

Virginia

National ADA Program Assistance Coordinator

CESSI

6858 Old Dominion Drive, Suite 250

McLean, VA 22101

adata@adata.org

www.adata.org

Principal Investigator: Shelia Newman

Public Contact: Jennifer Eckel, Project Director, 703/448-6155 (V); 703/448-3079 (TTY); Fax: 703/

442-9015

Project Number: ED-02-CO-0008

Start Date: May 3, 2002

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 02 $557,883; FY 03 $577,566

Abstract: The role of the ADA Program Assistance Coordinator (PAC) is to enhance the performance

of the organizations that are members of NIDRR’s nationwide ADA Technical Assistance grant

program. These include ten regional Disability and Business Technical Assistance Centers (DBTACs),

and newly funded National Center for Accessible Information Technology at University of Washington (AccessIT). The Program Assistance Coordinator conducts: (1) coordination services, (2) collaborative assistance, (3) public relations, and (4) reporting activities. In addition, the PAC organizes and

manages the semi-annual Project Directors’ meetings. It facilitates legal review of grantee generated

materials and conducts periodic searches for legal proceedings on the ADA and disability related laws

in federal and circuit courts. The PAC identifies and distributes appropriate materials from federal

agencies, related NIDRR research projects, and private and public sector organizations. As a gateway

to the national ADA technical assistance grant program, the PAC maintains a national Web site,

develops and disseminates promotional materials, and provides the DBTACs with daily news updates

to assure they have timely information on disabilty related legislation.
Capacity-Building for Rehabilitation Research and Training

NIDRR funding for capacity building supports advanced instruction for researchers

and service providers, and training for consumers in applications of new research

and technology. This involves training researchers across disciplines, training

rehabilitation practitioners and service providers to use research-generated

knowledge and new techniques, and training consumers to participate in research

efforts. Distinguished and Merit Fellowships are provided for a one-year period of

intense research.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Disability and Rehabilitation Research Projects .................................................................................... 4

Fellowships (Distinguished) .................................................................................................................. 8

Fellowships (Merit) ............................................................................................................................. 13

Advanced Rehabilitation Research Training Projects.......................................................................... 20

NIDRR Contracts ............................................................................................................................... 34

NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

UIC National Research and Training Center on Psychiatric Disability

University of Illinois at Chicago

Department of Psychiatry

104 South Michigan Avenue, Suite 900

Chicago, IL 60603-5902

www.psych.uic.edu/uicnrtc

Principal Investigator: Judith A. Cook, PhD, 312/422-8180, ext. 19

Public Contact: Jessica A. Jonikas, 312/422-8180, ext. 18 (V); 312/422-0706 (TTY); Fax: 312/422-

0740

Project Number: H133B000700

Start Date: September 30, 2000

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $450,000; FY 01 $450,000; FY 02 $450,000; FY 03 $450,000

Other funding: FY 00 $300,000 (CMHS); FY 01 $300,000 (CMHS); FY 02 $300,000 (CMHS)

Abstract: This Center conducts a comprehensive series of research and training projects that focus on

increasing self-determination for persons with psychiatric disabilities. The Center’s current projects are

composed of five core areas: (1) choices in treatment decision-making; (2) economic self-sufficiency;

(3) consumer advocacy under managed care; (4) career development through real jobs for real wages;

and (5) strengthening self-determination skills and self-advocacy. These core areas reaffirm that people

with psychiatric disabilities have the right to maximal independence, which grows out of making

choices in the decisions that affect their lives. Project activities are implemented by multidisciplinary

workgroups composed of consumers, families, service providers, state agency administrators, researchers, and Center staff. Outcome and measurement tools developed for each core area assess key outcomes and program policies related to self-determination. The project includes a collaboratively

planned state-of-the-science conference and workshop series on self- determination and psychiatric

disabilities and a comprehensive report on self- determination in this area. Advanced technology is

incorporated into each project’s objectives and Center training and dissemination activities. Multimedia

formats ensure widespread accessibility of the Center’s products and materials to multiple constituents.

Additionally, the Center conducts evaluation and basic research; trains consumers, families, and

rehabilitation, education, and mental health service providers. The staff also develops and provides

information for public policy initiatives.
8-4 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Connecticut

Capacity Building through Collaboration among American Indian

Tribes in Connecticut and Rhode Island

Mashantucket Pequot Tribal Nation

1 Matt’s Path

Mashantucket, CT 06339

vellien@mptn-nsn.gov

Principal Investigator: Valerie Ellien, PhD CRC

Public Contact: 860/396-2105; Fax: 860/396-2282

Project Number: H133A031706

Start Date: November 1, 2003

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $294,057

Abstract: This project builds capacity to improve the quality and utility of health and disability information available for American Indian tribes in Connecticut and Rhode Island. It achieves this goal

through three objectives: (1) to ensure the optimal participation of Connecticut and Rhode Island

Indian tribes in disability and rehabilitation research; (2) to encourage and support the development of

tribal members as researchers, administrators, and educators; and (3) to investigate and evaluate the

degree of access of American Indians to health and vocational rehabilitation services. Tribal members

of the Mashantucket Pequot Tribe, the historic Eastern Pequots, the Schaghticoke Tribal Nation, and

the Narragansett Indian Tribe serve as key collaborators, or community experts. All staff are trained in

the participatory action research model, and culturally appropriate research methodology utilizing the

expertise of the American Indian Rehabilitation Research and Training Center at Northern Arizona

University. The project utilizes an experienced senior rehabilitation researcher as mentor to the Research Coordinator, through development of the consumer interview, data collection, and analysis.

Graduate assistants are paired with tribal members in the collection of data in their respective communities. Health and disability data is analyzed, summarized, and shared with each of the tribes, and the

Connecticut Bureau of Rehabilitation Services through the Advisory Council of the Mashantucket

Pequot Vocational Rehabilitation Program.
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-5

Disability and Rehabilitation Research Projects

Louisiana

Rehabilitation Research Institute for Underrepresented Populations

(RRIUP)

Southern University A&M College

Department of Rehabilitation and Disability Studies

229 Blanks Hall

Baton Rouge, LA 70813

kundusubr@aol.com

Principal Investigator: Alo Dutta, PhD

Public Contact: Madan Kundu, PhD, 225/771-2819; Fax: 225/771-2293

Project Number: H133A031705

Start Date: December 1, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $350,000

Abstract: The goal of this project is that of improving the quality and utility of research related to

individuals with disabilities from traditionally underserved racial/ethnic population to enhance knowledge and awareness of issues related to these populations, to help maximize the full inclusion and

integration of individuals with disabilities into society, and to improve the effectiveness of services

authorized under the Rehabilitation Act. The objectives of this project are: (1) to expand the existing

and proven work alliance of three minority and two non- minority entities, e.g., Southern University,

University of Hawaii at Manoa, Crownpoint Institute of Technology, University of Illinois at UrbanaChampaign, and Independent Living Research Utilization respectively, for strengthening the disabilityrelated multicultural research framework and improving long-term rehabilitation outcomes of culturally

diverse groups; (2) to investigate, evaluate, and modify five measures to assess the capacity and competence of the disability and vocational rehabilitation workforce to provide quality services to individuals with disabilities from traditionally underserved racial and ethnic populations; (3) to investigate and

develop culturally appropriate research capacity and infrastructure building techniques to ensure the

optimal participation of minority entities and Indian tribes in disability and rehabilitation research; and

(4) to develop and evaluate outreach, recruitment, training, reinforcement, retention, and dissemination

strategies to enhance participation of students and investigators from traditionally underserved populations as rehabilitation researchers, administrators, and educators.
8-6 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Disability and Rehabilitation Research Projects

New York

Toward Equity: Innovative, Collaborative Research on Interpreter

Training, DBT, and Psychological Testing

University of Rochester

Department of Psychiatry

Deaf Wellness Center

300 Crittenden Boulevard

Rochester, NY 14642

Robert_Pollard@urmc.rochester.edu

Principal Investigator: Robert Pollard, PhD

Public Contact: 585/275-3544; Fax: 585/273-1117

Project Number: H133A031105

Start Date: July 1, 2003

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $299,900

Abstract: The research activities of this project focus on three thematic categories: mental health

interpreting, dialectical behavior therapy, and psychological testing. The interpreter training project

builds upon the Deaf Wellness Center’s (DWC) prior innovations in interpreter training and applies

them to four geographically dispersed urban settings. A team of experts in the mental health interpreting field employs the DWC’s demand-control schema approach and implements a five-month program

of training and supervision with a local interpreter pool. Dialectical behavior therapy (DBT) is a highly

structured treatment approach focusing on emotional regulation and behavioral self-control. The threepart DBT project adapts DBT materials and methods to maximize treatment access and efficacy with

three deaf consumer populations: those with language skills, those with limited language, and those

with comorbid psychiatric and substance abuse problems. The Signed Paired Associates Test and the

ASL Stories Test are tests of verbal learning and memory for sign language users. The extensive data

that exists at the DWC regarding the tests’ psychometric properties and clinical utility implications are

analyzed. This research has implications for the assessment of dementias, retardation, learning disabilities, etc. A second testing project is the development of a psychosis symptom rating scale. The goal is

to produce a tool that clinicians can employ to reliably and validly identify the nature and severity of

psychotic symptomatology in deaf individuals. Finally, the project includes a psychological testing

casebook, written based on reviews of hundreds of DWC psychological testing case files. Most of the

studies are multi-site, collaborative ventures.
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-7

Disability and Rehabilitation Research Projects

Texas

Minority Scholar/Champion Research Training Project

Texas Southern University

3100 Cleburne Avenue

Houston, TX 77004

www.tsu.edu/academics/continue/research/index.asp

Principal Investigator: Irvine E. Epps, EdD, 713/313-7224

Public Contact: Darrell K. Simmons, Project Coordinator, 713/313-7753; Fax: 713/313-7579

Project Number: H133A031704

Start Date: December 1, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $350,000

Abstract: The Minority Scholars/Champions Research Training Project develops, implements, and

evaluates the effectiveness of a train-the-trainer “Scholar/Champion” model to facilitate increased and

improved vocational rehabilitation (VR)/disability research among the targeted Historically Black

Colleges and Universities (HBCUs). More specifically, the project develops an innovative research

infrastructure of institutional “cores” that partner an HBCU, Texas Southern University (TSU), with a

majority research institution, Baylor College of Medicine (BCM). Together, these partner institutions

create a collaborative research infrastructure that increases research capacity and helps build an institutional research infrastructure at five additional HBCUs in Texas. These “cores” are: (1) the Administrative, Planning, and Evaluation Core directs the Center, selects Center participants, and supervises

evaluation of all project activities, budgets, and reports; (2) the Training Core uses innovative methods

of onsite and off-site training to recruit, support, and mentor minority investigators in the areas of

research design, development, and implementation, including analysis of racial and cultural factors

related to VR/disability research; (3) the Community Collaboration and Dissemination Core partners

with communities and VR/disability agencies to engage individuals with disabilities in research and

training, using a model of participatory action-oriented research, and disseminates culturally-sensitive

information related to VR/disability research to community groups, agencies, and VR/disability researchers; and (4) the Research Core works with the HBCU Scholar/Champions to conduct innovative

and rigorous pilot research projects as well as write fully developed research proposals that address

racial disparities in VR/disability research.
8-8 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Fellowships (Distinguished) Fellowships (Distinguished)

Connecticut

Employment Outcomes and Experiences of College Graduates with

Learning Disabilities

Joseph W. Madaus, PhD

362 Fairfield Road, Unit 2064

Storrs, CT 06269-2064

joseph.madaus@uconn.edu

Principal Investigator: Joseph W. Madaus, PhD

Public Contact: 860/486-0178; Fax: 860/486-5799

Project Number: H133F030022

Start Date: August 1, 2003

Length: 12 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $55,000

Abstract: Building upon significant findings from a follow-up study of 79 graduates with learning

disabilities from a single institution, this project uses a technically-proven survey instrument to explore

the employment experiences of graduates with LD from at least 6 postsecondary institutions across the

country that vary in size, competitiveness, and mission. Over the last decade, public policy has increasingly emphasized the need to improve outcomes for students with the largest cohort of students with

disabilities. Growing numbers of professionals, parents, and students with LD perceive postsecondary

education as a critical means to the goal of gainful employment. Much attention has thus been focused

on the transition and adjustment to college and on assisting students to access individual accommodations and auxiliary aids. However, there is a paucity of research related to how postsecondary education impacts the subsequent transition to employment for these individuals. Specifically, it is largely

unknown how postsecondary education prepares individuals with LD to handle the interaction of the

disability and the complex demands of the employment environment. Obtaining such information from

a large, heterogeneous database is vital in assisting secondary and postsecondary programs to develop

and refine services that focus on the transition to employment. Through this project, information is

solicited related to respondents’ demographic information (e.g. rates of employment, salary, type of

employment, level of education obtained), the interaction of disability and the employment environment (e.g., disability self-disclosure, knowledge of the Americans with Disabilities Act accommodation, and self-regulatory strategy use), levels of job satisfaction, and levels of employment self-efficacy.

Finally, suggestions related to how postsecondary disability support services could improve the preparation of graduates to make the transition to employment are obtained from the respondents.
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-9

Fellowships (Distinguished)

Maryland

Examination of Youth With Concomitant Emotional, Behavioral, and

Learning Disabilities (C-EBLD): Analyses of Characteristics, Subtypes,

Risk Factors, and Outcomes

Elana E. Rock, EdD

108 Beatty Hall

Loyola College in Maryland

4501 North Charles Street

Baltimore, MD 21210-2699

erock@loyola.edu

Principal Investigator: Elana E. Rock, EdD

Public Contact: 410/617-5177; Fax: 410/617-5097

Project Number: H133F030041

Start Date: September 1, 2003

Length: 12 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $55,000

Abstract: The purpose of the study is to increase the existing knowledge base about students with

serious emotional disturbances and concomitant disorders by: identifying and describing diagnostic

characteristics, symptomatology, and associated variables of this population; identifying characteristic

patterns or subtypes within this population; identifying mediating variables and risk factors related to

poor outcomes or comorbidities; providing longitudinal data on course and prognosis of disability

subtypes; and examining interventions and service delivery methods for predictive effects on outcomes. This project conducts a thorough examination of a sample of children and adolescents who are

currently at greatest risk for failure in school and in adult adjustment: youth with concomitant emotional/behavioral and learning disabilities. Results of each segment of this multi-phasic study enhance

the existing research base related to these students. health, and medical organizations.
8-10 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Fellowships (Distinguished)

Missouri

Shifting Perceptions: Mental Retardation in Ancient Greece

Martha L. Rose

Truman State University

Division of Social Science

100 East Normal Street

Kirksville, MO 63501-4221

mrose@truman.edu

www2.truman.edu/~mrose

Principal Investigator: Martha L. Rose

Public Contact: 660/785-4057; Fax: 660/785-4337

Project Number: H133F030042

Start Date: August 15, 2003

Length: 12 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $55,000

Abstract: The goal of this project is to complete a book-length history of people with mental retardation in the ancient Greek world from the perspective of disability studies. The main purpose of this

project is to contribute to the effort to restore people with mental retardation to the pages of history and

specifically to the history of ancient Greece, which is the cultural, philosophical, and political ancestor

of Western civilization. Innovative strategies utilized in this project include applying the methodologies

of disability studies to ancient history; using mental retardation as a category of analysis in ancient

social history alongside childhood, gender, and slavery; and emphasizing mental retardation itself as a

category of historical analysis that aids in understanding both ancient and modern society. The phenomenon of mental retardation sheds light not only on the historical role of people with cognitive

disabilities, but also reflects and represents views of childhood, civic participation, class, education,

gender, and religion, to name only a few categories. In focusing on the much-ignored category of

cognitive disability, the project will help to adjust an imbalance of emphasis in disability studies.
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-11

Fellowships (Distinguished)

New Jersey

Exploiting Residual Functions After Paralysis

William Craelius, PhD

Rutgers University

617 Bowser Road

Piscataway, NJ 08854

craelius@rci.rutgers.edu

www-rci.rutgers.edu/~craelius/

Principal Investigator: William Craelius, PhD

Public Contact: 732/445-2369; Fax: 732/445-3753

Project Number: H133F030011

Start Date: July 1, 2003

Length: 12 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $55,000

Abstract: This project develops new ways for people with paralysis due to SCI or stroke to use and

improve their residual function through improved communication with assistive devices. The primary

emphasis is on improving the human-machine interface, that is the coupling between the human user

and his assistive devices. The interface is a myo-kinetic interface (MKI) wherein a sensory array is

applied to limb muscles and joints in order to register residual kinetic activity, that is then used to

control an assistive device. MKI offers advantages over current interface methods in terms of convenience, cost, and reliability. When coupled with assistive devices, MKI will help users retrain their

affected arm and hand through biofeedback of their progress during rehabilitation. Such an interface

could help users regain lost functions such as hand dexterity.
8-12 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Fellowships (Distinguished)

Pennsylvania

Clinical Supervision Within the State-Federal Vocational

Rehabilitation Program: A Combined Qualitative and Quantitative

Analysis

James Herbert, PhD

Penn State University

314 Cedar Building

University Park, PA 16802-7000

jth4@psu.edu

Principal Investigator: James T. Herbert, PhD

Public Contact: 814/863-3421; Fax: 814/863-7750

Project Number: H133F020007

Start Date: September 1, 2002

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $55,000; FY 03 (No-cost extension through 8/31/2004)

Abstract: This project develops a model of effective supervision that is field- based, from counselor

and supervisor perspectives within the state-Federal vocational rehabilitation program. The research

combines qualitative and quantitative (nested design) methods to address five research objectives that

examine the nature of clinical supervision as practiced by the Pennsylvania Office of Vocational

Rehabilitation. Approximately 100 participants (80 counselors and 20 supervisors) from all of the 15

district offices complete an individual, structured interview. After finishing the interview, research

participants complete two research scales. The first, the Rehabilitation Counselor Supervision Inventory, examines the knowledge and preparedness to conduct supervision. The second scale, the Supervisory Working Alliance Inventory, examines two dimensions of the supervisory relationship, rapport,

and client focus. Results from this study provide a better understanding of effective and ineffective

supervision and what variables contribute to each type.
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-13

Fellowships (Merit) Fellowships (Merit)

Arizona

Assistive Technology and Adult Literacy: Bridging the Gap for Adults

with Learning Disabilities

Heidi Silver-Pacuilla

Pima College Adult Education

401 North Bonita

Tucson, AZ 85709-6500

hsilverp@pima.edu

Principal Investigator: Heidi Silver-Pacuilla

Public Contact: 520/206-6500; Fax: 520/206-6510

Project Number: H133F020025

Start Date: August 1, 2002

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $45,000; FY 03 (No-cost extension through 10/31/2003)

Abstract: This project investigates whether assistive technology access and instruction improves the

literacy skills and goal attainment of adult students with learning disabilities, when combined with

regular adult basic education classes. A participatory action research (PAR) design seeks reflective

participant involvement at every level, incorporating personal reflection, group dialogue, negotiation of

the emerging analysis, and social action in an ongoing, long-term commitment. The overall goals of

this project are to: (1) investigate the effects of assistive technology on adult literacy learners’ skill

development and goal attainment, (2) investigate the personal and social impacts that participation has

on the learners, and (3) make recommendations to the field of adult education on promising practices

for the infusion of assistive technology into literacy instruction.
8-14 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Fellowships (Merit)

Illinois

Motor Imagery Protocol to Improve Functional Recovery from

Hemiparesis in Stroke Survivors

Jennifer A. Stevens, PhD

345 East Superior Street, Room 1310

Chicago, IL 60611-4496

j-stevens3@northwestern.edu

Principal Investigator: Jennifer A. Stevens, PhD

Public Contact: 312/238-1235; Fax: 312/238-2208

Project Number: H133F030015

Start Date: July 1, 2003

Length: 12 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $45,000

Abstract: This project examines the behavioral and clinical efficacy of a recently developed Motor

Imagery Protocol (MIP) as a treatment for upper extremity hemiparesis in stroke survivors. To date,

there are no stroke rehabilitation approaches that specifically target the cognitive level of motor planning as a means to facilitate functional recovery from hemiparesis. MIP aims to practice the circuitry

mediating motor planning, representation, and execution of action through the use of appropriate

cognitive motor tasks. The primary objective of the project is to complete a large-group clinical trial

evaluating the effectiveness of MIP as a treatment for upper extremity hemiparesis in stroke survivors.

Participants complete a four-week intervention of either MIP or occcupational therapy. Clinical and

behavioral assessments are administered immediately before and after treatment and at two long- term

follow-up intervals (one and three months post-intervention month).
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-15

Fellowships (Merit)

Illinois

Body Mass Index and Disability In Older Adults: The Health and

Retirement Study

Xiaoxing He, MD, MPH

676 North St. Clair Street, Suite 200

Chicago, IL 60611-3059

xing@northwestern.edu

Principal Investigator: Xiaoxing He, MD, MPH

Public Contact: 312/695-1811; Fax: 312/695-0951

Project Number: H133F030023

Start Date: August 1, 2003

Length: 12 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $45,000

Abstract: This project conducts focused secondary analyses of public data from the Health and

Retirement Survey (HRS). The HRS data collection is sponsored by the National Institute on Aging

and conducted by the Institute for Social Research at the University of Michigan, Ann Arbor. Designed to investigate health outcomes, retirement decisions, and economic security during retirement,

the HRS targeted community-dwelling U.S. adults who were born between 1931 to 1941. In-home

interviews were conducted in English or Spanish in 7,702 households (82.0% response rate), yielding

12,652 participants at baseline 1,992. Follow-up telephone interviews were conducted every two years

through 2000. Vital status was determined through the National Death Index and household contacts.

The analyses address major public health concerns with obesity, obesity-related disability, and physical

inactivity. The specific study objectives are: (1) to determine the relationship between body-mass

index, physical activity, overall health, and physical functioning; (2) to examine changes in bodyweight from 1992 to 2000 among adults in late middle age and associated factors; and (3) to explore

racial/ethnic differences on patterns of physical activity and how much of the differences can be

explained by socioeconomic status.
8-16 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Fellowships (Merit)

Iowa

Understanding Ethical Decision-Making and Behaviors: An Important

Prelude to Improved Service Delivery and Employment Outcomes

Jodi L. Saunders, PhD

University of Iowa

354 N. Lindquist Center

Iowa City, IA 52242

jodi-saunders@uiowa.edu

Principal Investigator: Jodi L. Saunders, PhD

Public Contact: 319/339-9806; Fax: 319/335-5291

Project Number: H133F030016

Start Date: July 1, 2003

Length: 12 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $45,000

Abstract: The purpose of the study is to examine the ethical decision-making of rehabilitation counseling students and professionals. The study has both quantitative and qualitative components. The

quantitative aspect is designed to examine cognitive complexity, five personality dimensions, and

moral reasoning of students and professionals in rehabilitation counseling with various levels of experience (novice, experienced, and expert). Descriptive analyses, regression analyses, and analysis of

variance are conducted in this qualitative aspect of the study. Structural equation modeling is used to

examine the hypothesized relationship among the variables identified in this study in an attempt to

transform a theory into a model that can be statistically tested. The second aspect of the study is a

quantitative approach to understanding ethical decision-making. Individuals with various levels of

experience (novice, experienced, and expert) are asked to process ethical dilemmas “out loud” and the

actual cognitive process of ethical decision-making behavior is analyzed. As a result, the outcome of

this study provides both quantitative and qualitative data regarding ethical decision-making and provides valuable information in regard to the development of effective curricula, interventions, and

strategies for improving the skills of service providers and the services and outcomes they provide to

people with disabilities.
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-17

Fellowships (Merit)

Iowa

Is Passive Spine Instability a Determinant of Trunk Motor Control

Differences between Asymptomatic Individuals and Patients with

Chronic Low Back Pain?

Sheri P. Silfies

306 South Waterford Lane

Wilmington, DE 19808-4422

silfies@drexel.edu

Principal Investigator: Sheri P. Silfies

Public Contact: 215/762-5136; Fax: 215/762-3886

Project Number: H133F030024

Start Date: September 1, 2003

Length: 12 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $45,000

Abstract: The primary aims of this research project are to: (1) determine the differences in trunk motor

control strategies between asymptomatic individuals and patients with chronic low back pain (CLBP)

during a standardized functional task; (2) establish whether passive spine instability is a determinant of

these motor control differences; and (3) determine which factor(s) (muscle recruitment patterns, index

of spinal stability, pain parameters, self-reported disability, and degree of spinal degeneration or pathology) can be used to improve classification of patients with CLBP. Low back pain continues to represent a major health concern in industrialized countries and continues to place an increasing burden on

the health care budget. Of main concern are the individuals who become disabled with CLBP, which

results in considerable disruption to the patient’s functional, economic, and social status, not to mention

a greater use of health care dollars than any other musculoskeletal diagnosis. The etiology of most

CLBP is unknown and as such, it is not surprising that treatment effectiveness has fallen short.
8-18 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Fellowships (Merit)

New York

Journal Writing Intervention in Alleviating Psychological Distress of

Korean Mothers of Children with Developmental Disabilities

Su-Je Cho, PhD

75 Oceana Drive, East Unit 1G

Brooklyn, NY 11235

scho@fordham.edu

Principal Investigator: Su-Je Cho, PhD

Public Contact: 718/646-8255; Fax: 212/636-6542

Project Number: H133F030018

Start Date: July 1, 2003

Length: 12 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $45,000

Abstract: This project investigates the effects of a journal writing intervention on Korean-American

mothers of children with developmental disabilities. Fifty Korean-American mothers who have children with developmental disabilities diagnosed within the year participate. Based on pretest results, the

participants are randomly assigned to either the experimental or the control group. The experimental

group receives a journal notebook and written instructions designed to help them write about stressful

events associated with their child’s disability while the control group is given written instructions for

writing about trivial events. All returned journal notebooks are transcribed verbatim, translated, and

analyzed to explore if any specific items in the journal writing instructions are more effective or any

modification is necessary in the instructions.
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-19

Fellowships (Merit)

New York

The Practice of a Functional Bimanual Task By Children With

Hemiplegic Cerebral Palsy

4020 Wakefield Drive

Colorado Springs, CO 80906-4325

joanne.valvano@uchsc.edu

Principal Investigator: Joanne Valvano, PhD, PT

Public Contact: 719/226-0487; Fax: 719/226-0492

Project Number: H133F030020

Start Date: September 1, 2003

Length: 12 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $45,000

Abstract: This project addresses the disorder of hemiplegic cerebral palsy (HCP) in young children.

HCP is a category of CP that primarily involves the arm and leg on one side of the body. The project

explores effects of part-task practice on the learning of bimanual motor skills by children with HCP.

The bimanual task requires the child to cut a line on a paper with an adapted scissors apparatus. In this

project, part-task practice involves the practice of the movement component performed by the extremity affected with HCP prior to practice of the whole bimanual task. The overall goal of the project is to

conduct two experiments: Experiment 1 investigates the effects of part-task practice on the learning of

a bimanual task by children with a HCP; experiment 2 investigates the effects of part-task practice on

the learning of the same bimanual task by children with typical development in order to contrast the

utility of part-task in the two groups of children.
8-20 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

California

Advanced Rehabilitation Research Program: Ed Roberts Fellowship in

Disability Studies

University of California

IURD

104 Wheeler Hall MC 1870

Berkeley, CA 94720-1870

sschweik@uclink.berkeley.edu

www~iurd.ced.berkeley.edu/Press/2003~02~12disability~studies~fellowship.h tm

Principal Investigator: Susan Schweik

Public Contact: 510/642-4874 (V); 510/549-1865; 510/913-5791; Fax: 510/643-9576

Project Number: H133P020009

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Other funding: FY 04 $150,000

Abstract: This program trains scholars who have PhD, MD, or other advanced professional degrees,

conferred in the last five years, to be leaders in disability studies and rehabilitation research, teaching

and mentorship. Based at the University of California, Berkeley, a San Francisco Bay area-wide

consortium of universities, research institutes, and disability agencies recruits people who want to

broaden their theoretical outlook and their disability research methodological skills. In particular, the

project recruits scholars with significant disabilities from minority groups who have not had the opportunity for collaborative cross-disciplinary research study of disability that includes social science and

the humanities. The project supports three nine-month-long (September to May) Ed Robert

Postdoctoral Fellowships a year for each of the five program years. Fellows devote their full-time effort

to Fellowship activities on site. Funding includes a stipend and travel funds.
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-21

Advanced Rehabilitation Research Training Projects

Florida

Interdisciplinary Rehabilitation Research Post-Doctoral Program

University of Florida

Department of Occupational Therapy

P.O. Box 100164

Gainesville, FL 32610-0164

wmann@hp.ufl.edu

www.hp.ufl.edu/rehabsci/

Principal Investigator: William C. Mann, PhD

Public Contact: 352/392-2617; Fax: 352/846-1042

Project Number: H133P020005

Start Date: August 1, 2002

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Abstract: This project addresses the shortage of rehabilitation researchers through an interdisciplinary

postdoctoral training program in rehabilitation research. The focus is on recruiting and training

postdoctoral fellows with backgrounds in professions of high need, specifically rehabilitation engineering, physical therapy, and occupational therapy. There is also a strong focus on recruiting members of

groups that have been traditionally underrepresented in rehabilitation research positions. The participating faculty for this program have large funded programs of rehabilitation research and also have

considerable experience in serving as mentors for advanced research training. The program offers

postdoctoral fellowships from two to three years to qualified individuals interested in rehabilitation

research. Postdoctoral fellows focus in an area related to one of the levels of these models: neurological

rehabilitation, rehabilitation engineering, and rehabilitation outcomes research.
8-22 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training Project in Rehabilitation

Services Research

Northwestern University

Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

www.rseu.northwestern.edu

www.northwestern.edu/ihsrps

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-4572

Project Number: H133P980014

Start Date: May 1, 1998

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $150,000; FY 99 $150,000; FY 00 $150,000; FY 01 $150,000; FY 02

$150,000; FY 03 (No-cost extension through 4/30/2004)

Abstract: This project develops a five-year fellowship program in rehabilitation services research at

Northwestern University’s Institute for Health Services Research and Policy Studies and the Department of Physical Medicine and Rehabilitation. It uses available expertise and collaborators to train

postdoctoral fellows in rehabilitation health services research. Over two years the program includes

course work, a practicum, original research, and grant writing. Fellows new to health services research

have six core courses, as well as the two additional courses for all fellows. The first year concentrates

on beginning Masters in Public Health (MPH) courses. The second year includes intermediate MPH

course work plus electives. Each fellow is expected to develop an individual research project by the

end of the first training year and a publishable article by the end of the second year in addition to

submitting at least one grant application related to the research activity.
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-23

Advanced Rehabilitation Research Training Projects

Illinois

Rehabilitation Science for Engineers and Basic Scientists: An Advanced

Training Program

Northwestern University

Rehabilitation Institute of Chicago

345 East Superior Street, Room 1406

Chicago, IL 60611

w-rymer@northwestern.edu

Principal Investigator: W. Zev Rymer, MD, PhD

Public Contact: 312/238-3919; Fax: 312/238-2208

Project Number: H133P990006

Start Date: February 1, 1999

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $148,323; FY 00 $148,752; FY 01 $148,724; FY 02 $148,720; FY 03

$146,384

Abstract: The goal of this program is to increase the number of PhD engineers and basic scientists

trained to perform research aimed at solving problems of people with disabilities. To meet this objective, the project trains postdoctoral scientists in three areas of special expertise: musculoskeletal biomechanics; neurorehabilitation; and prosthetics, orthotics, and biomaterials. Targeted technical training is

coordinated with intensive clinical instruction and experience. Postdoctoral trainees, including scientists and engineers from minority or disability groups, are recruited by regional and national advertising

and via the Internet. Many training faculty are based within the Rehabilitation Institute of Chicago,

providing access to active clinical rehabilitation programs, and interaction both with clinical faculty and

people with disabilities.
8-24 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training

University of Illinois at Chicago

Department of Disability and Human Development

College of Health and Human Development Sciences

1640 West Roosevelt Road

Chicago, IL 60608-6904

theller@uic.edu

www.uic.edu/dhd

Principal Investigator: Tamar Heller, PhD

Public Contact: 312/413-1537; Fax: 312/996-6942

Project Number: H133P000005

Start Date: April 1, 2000

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $150,000; FY 01 $150,000; FY 02 $150,000; FY 03 $150,000

Abstract: This project provides an intensive interdisciplinary postdoctoral training program for disability and rehabilitation research scholars. The program combines immediate immersion in an ongoing

research program with a focused didactic training experience, providing trainees with knowledge of

the critical values, current issues, and innovative approaches in contemporary disability research. The

training is offered through a cooperative effort of three units within the College of Health and Human

Development Sciences: the Department of Disability and Human Development, Department of Occupational Therapy, and the Department of Physical Therapy. These departments have an established

record of successful collaboration in advanced training, including creating the Interdisciplinary in

Disability Studies at UIC, a unique interdisciplinary doctoral program that addresses the multidimensional nature of disability. A central theme of this program is that the current fragmentation of knowledge regarding disability can be rectified only by preparing future scholars and researchers who have a

coherent, integrated, and in-depth knowledge of the multidimensional nature of disabilities. All three

academic units offering this advanced research training have senior faculty with established, ongoing

research programs capable of guiding postdoctoral training in three specialized content areas of disability research: disability measurement, disability experience, and disability service and policy.
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-25

Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training Project in Rehabilitation

Services Research

Northwestern University

Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

www.rseu.northwestern.edu

www.northwestern.edu/ihsrps

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-4572

Project Number: H133P030002

Start Date: May 1, 2003

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 03 $150,000

Abstract: This project develops a five-year fellowship program in rehabilitation services research at

Northwestern University’s Institute for Health Services Research and Policy Studies and the Department of Physical Medicine and Rehabilitation. It uses available expertise and collaborators to train

postdoctoral fellows in rehabilitation health services research. Over two years the program includes

course work, a practicum, original research, and grant writing. Fellows new to health services research

have six core courses, as well as the two additional courses for all fellows. The first year concentrates

on beginning Masters in Public Health (MPH) courses. The second year includes intermediate MPH

course work plus electives. Each fellow is expected to develop an individual research project by the

end of the first training year, a publishable article by the end of the first year, and two articles by the

end of the second year, in addition to submitting at least one grant application related to the research

activity.
8-26 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects

Massachusetts

An Integrated Rehabilitation Engineering Research Training Program

Boston University

44 Cummington Street

Boston, MA 02215

jcollins@bu.edu

Principal Investigator: James J. Collins, PhD

Public Contact: 617/353-0390; Fax: 617/353-5462

Project Number: H133P990003

Start Date: February 1, 1999

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $149,915; FY 00 $149,915; FY 01 $149,915; FY 02 $149,915; FY 03

$149,915

Abstract: The goal of this project is to establish a clinically oriented, scientifically grounded educational program for training biomedical engineering (BME) postdoctoral fellows in rehabilitation engineering. The overall objective of the program is to produce biomedical engineers who are capable of

communicating and interacting with physician investigators in a significant and meaningful manner,

and who are capable of defining and solving clinically relevant problems in rehabilitation engineering.

The specific objectives of this project are: (1) to establish a core faculty and administrative structure for

the training program; (2) to provide BME postdoctoral fellows with the opportunity to participate in

clinical educational rotations in physical medicine and rehabilitation (PM&R) and geriatrics; (3) to

provide BME postdoctoral fellows and medical trainees in geriatrics or PM&R with the opportunity to

collaborate on clinically relevant research projects; and (4) to establish a rehabilitation engineering

curriculum that includes didactic sessions on clinical research methodology, as well as a seminar series

to expose trainees to leaders in the field and develop their own expertise in giving scientific presentations. Accordingly, this program trains a new cadre of biomedical engineers with the knowledge and

skills to develop innovative rehabilitation technologies that directly benefit individuals with disabilities.
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-27

Advanced Rehabilitation Research Training Projects

Massachusetts

Rehabilitation Health Services Research Fellowship Program

Boston University

Sargent College of Health and Rehabilitation Sciences

635 Commonwealth Avenue

Boston, MA 02215

mtripodi@bu.edu

www.bu.edu/cre/training

Principal Investigator: Alan M. Jette, PhD, 617/353-2704

Public Contact: Maria Tripodi, 617/353-4202; Fax: 617/353-1355

Project Number: H133P990004

Start Date: June 1, 1999

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $149,999; FY 00 $149,429; FY 01 $149,999; FY 02 $149,999; FY 03

$149,996

Abstract: This program provides health services research training experience for doctoral-level professionals from the rehabilitation disciplines. The primary goal is to qualify these fellows to conduct

independent, high quality, funded health services research on problems related to disability and rehabilitation. Specific goals of the program include: (1) providing intensive, broad-based health services

research training consisting of didactic coursework offered by faculty of Boston University to a total of

six postdoctoral fellows over the course of the five-year project; (2) providing each fellow with the

opportunity to conduct rehabilitation health services research under the guidance of a faculty mentor

from Boston University; and (3) critically evaluating this rehabilitation health services research training

program, including the recruitment, academic preparation, mentoring, and the career development of

participating fellows. Through state-of-the-art training and mentoring, the project contributes to the

creation of a cadre of highly skilled health services researchers equipped to conduct research that

improves the measurement of rehabilitation outcomes, evaluate new and existing rehabilitation inventions, and broadly apply health services research methods to the improved organization and management of rehabilitation services in this changing health care environment.
8-28 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects

Massachusetts

Advanced Research Training Program in Psychiatric Rehabilitation

Boston University

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue

Boston, MA 02215-1303

zlatka@bu.edu; ellison2@bu.edu

www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD; Marsha Ellison, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133P020011

Start Date: September 1, 2002

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 02 $149,984; FY 03 $149,991

Abstract: This project prepares a cadre of six advanced-level researchers in the area of psychiatric

rehabilitation. The recruitment efforts target consumers, with the expectation that one or more consumers will be selected for the training program. Six fellows are recruited over the course of the project.

The training program consists of two consecutive cycles of 2.25-year postdoctoral fellowships in

psychiatric rehabilitation research. In order to optimize the training experience, three fellows are in

residence during each cycle. While the fellowship is designed to provide broad- based intensive

training in psychiatric rehabilitation research, the six fellows develop a particular expertise in conducting recovery-oriented research, given the current research profile of the Center for Psychiatric Rehabilitation at Boston University. Through a variety of training modalities fellows acquire competencies

in the following areas: psychiatric rehabilitation and recovery oriented systems, recovery framework

and consumer issues, research design/methodology, statistics, computer literacy, conduct of applied

rehabilitation research, and grant and professional writing.
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-29

Advanced Rehabilitation Research Training Projects

Michigan

The UMHS/MSU/AACIL Rehabilitation Research Training Program

University of Michigan

Department of Physical Medicine and Rehabilitation

Rehabilitation Psychology

D4100 MPB

1500 East Medical Center Drive

Ann Arbor, MI 48109-0718

dgtate@umich.edu

www.med.umich.edu/pmr/arrtp/

Principal Investigator: Denise G. Tate, PhD

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133P030004

Start Date: September 1, 2003

Length: 60 months

NIDRR Officer:

NIDRR Funding: FY 03 $150,000

Abstract: The University of Michigan Health System (UMHS), Department of Physical Medicine and

Rehabilitation, and the Ann Arbor Center for Independent Living (AACIL) with consulting faculty

from Michigan State University (MSU) and Wayne State University (WSU) have developed a training

program to train six PhD and ten MD fellows. Training opportunities include the existing research

programs funded at UMHS, the academic doctoral level rehabilitation counseling program at MSU, the

multidisciplinary rehabilitation program at WSU, and opportunities for research training at a community- based agency, the AACIL. Emphasizing the consumer-scientist-practitioner model, this

multidisciplinary research training program utilizes faculty and resources from 3 universities and from

the AACIL to train 16 new fellows. Fellows and resident trainees may select from a curriculum that

focuses on three content areas: (1) health rehabilitation outcomes; (2) independent living and community re-integration; and (3) social/environmental aspects of rehabilitation, including assistive technology.
8-30 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects

New York

Advanced Rehabilitation Research Training

Mount Sinai School of Medicine

One Gustave L. Levy Place

New York, NY 10029-6574

mary.hibbard@mssm.edu

www.mssm.edu/tbinet

Principal Investigator: Mary R. Hibbard, PhD

Public Contact: 212/659-9374; Fax: 212/348-5901

Project Number: H133P000001

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $138,006; FY 01 $140,382; FY 02 $140,341; FY 03 $144,215

Abstract: This project provides advanced rehabilitation research training to nine postdoctoral psychology fellows. Each fellow participates in the ongoing research of the NIDRR-funded Rehabilitation

Research and Training Center (RRTC) on Community Integration of Individuals with Traumatic Brain

Injury. The goals of the training are to: (1) increase the number of researchers in the field of rehabilitation, (2) enhance knowledge of rehabilitation research, (3) disseminate research findings within the

professional consumer communities, and (4) train fellows to become part of an interdisciplinary research team. The RRTC is a model program of participatory action research that focuses on four core

research areas: quality of life/outcome measurement, disability over the life span, models of community

integration, and psychosocial challenges of persons with disabilities.
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-31

Advanced Rehabilitation Research Training Projects

Pennsylvania

Research Training in Rehabilitation Science with Special Emphasis on

Disability Studies

University of Pittsburgh

School of Health and Rehabilitation Sciences

Dean’s Office, 4029 Forbes Tower

Pittsburgh, PA 15260

cliffb+@pitt.edu

www.shrs.upmc.edu/research/fellowships.html

Principal Investigator: Clifford Brubaker, PhD

Public Contact: 412/647-1261; Fax: 412/647-1255

Project Number: H133P970013

Start Date: September 1, 1997

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 97 $141,327; FY 98 $147,327; FY 99 $147,327; FY 00 $141,327; FY 01

$150,000; FY 02 (No-cost extension through 8/31/2003) FY 03 (No-cost extension through 8/31/

2004)

Abstract: This program provides a plan for research training in the emerging academic discipline of

rehabilitation science. The program is based on a multidisciplinary approach to the study of topics and

issues of relevance to people with disabilities. A primary goal is to develop an increased capacity for

research in the general domain of rehabilitation science, and particularly in the area of disability studies. The program of study is based on a challenging curriculum of didactic instruction, clinical exposures, community interaction, and research experiences, and encompasses study and research over a

spectrum of scientific, technical, psychosocial, physical, physiological, cultural, ethical, political,

economic, and clinical issues.
8-32 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects

Texas

Advanced Rehabilitation Research Training

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

One Baylor Plaza

Houston, TX 77030

drintala@bcm.tmc.edu

public.bcm.tmc.edu/pm&r/education/Fellowships/RehabResearch.html

Principal Investigator: Diana H. Rintala, PhD, 713/791-1414, ext. 5807

Public Contact: Daisy McKenzie, 713/799-5033; Fax: 713/794-7623

Project Number: H133P020003

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000

Abstract: This program trains postdoctoral fellows in the skills necessary to become independent

investigators in rehabilitation. Research training in the Department of Physical Medicine and Rehabilitation is multidisciplinary in nature, and encompasses the spectrum from basic mechanism to societal

integration. Through this program, fellows develop research expertise in spinal cord injury, stroke,

Parkinson’s disease, amputee rehabilitation, neuropsychological rehabilitation/cognitive neuropsychology, rehabilitation outcomes, and social policy. The coursework includes topics such as research

methodology, statistical methods, ethical issues, special populations, and scientific writing. The Applied Rehabilitation Research Course complements the Clinical Scientist Training Program by emphasizing the unique characteristics of research in rehabilitation. Fellows also participate in other education

activities such as the department’s Research, Education, and Development Seminar and are expected

to present and produce documentation for publication on their independent research and prepare

applications for federal funding building on their project for career development. They also attend, and

submit abstracts for presentation at, national professional meetings to begin to integrate into the greater

rehabilitation research community.
NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research 8-33

Advanced Rehabilitation Research Training Projects

Wisconsin

Advanced Rehabilitation Research Training for Physicians and

Biomedical Engineers

Marquette University

Orthopaedic and Rehabilitation Engineering Center

735 North 17th Street

P.O. Box 1881

Milwaukee, WI 53201

depps@mcw.edu

www.orec.org

Principal Investigator: Gerald Harris, PhD, 414/288-0698

Public Contact: Deborah Epps, Project Administrator, 414/288-0696; Fax: 414/288- 0713

Project Number: H133P020004

Start Date: July 1, 2002

Length: 60 months

NIDRR Officer: William V. Schutz, PhD, MSW, MPH

NIDRR Funding: FY 02 $84,566; FY 03 $144,506

Abstract: This project develops expertise, enthusiasm, and productivity in rehabilitation research that

results in an increase in the number of rehabilitation- trained physicians and biomedical engineers able

to conduct independent transdisciplinary research on problems related to disability and rehabilitation.

The program is specifically designed to give the postdoctoral trainees the skills needed to become

productive career researchers. The training program utilizes a rehabilitation research team consisting of

a focused cadre of mentors and two postdoctoral fellows (one physical-medicine-and-rehabilitationtrained MD and one postdoctoral biomedical engineer). The trainees are enrolled in the research

training program for 18 months. A total of three physicians and three biomedical engineers participate

in this training program over the five year period.
8-34 NIDRR Program Directory FY 2003 - Capacity Building for Rehabilitation Research

NIDRR Contracts NIDRR Contracts

Virginia

Technical Support for Computer and Other Related Activities

Conwal, Inc.

6858 Old Dominion Road

McLean, VA 22101

snewman@conwal.com

www.conwal.com

Principal Investigator: Shelia Newman

Public Contact: 703/448-2300 (V); 703/448-3079 (TTY); Fax: 703/448-3087

Project Number: ED-98-CO-0004

Start Date: January 9, 1998

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 98 $569,870; FY 99 $962,046; FY 00 $312,562; FY 01 $714,569; FY 02 (Nocost extension through 1/7/2003) FY 03 (No-cost estension through 8/22/2003)

Abstract: This project provides technical support to NIDRR for computer-based and other related

activities. Activities include data collection and tabulation, database and management information

system development, statistical analyses, literature reviews, small surveys, and focus group meetings.

Active projects involve analysis and design of a management information system for NIDRR, focus

groups for planning the research agenda, and electronic dissemination.
State Technology Assistance

This program, funded under Title I of the the Assistive Technology Act of 1998,

supports consumer-driven Grants to States. Currently there are 56 projects that provide statewide, comprehensive, technology-related assistance for individuals with

disabilities of all ages. The purpose of the program is to increase and improve access

to assistive technology devices and services through public awareness and information, advocacy, outreach, technical assistance and training, and interagency coordination.

Contents

Assistive Technology Technical Assistance Projects ............................................................................. 3

Alternative Financing Programs............................................................................................................ 4

State Technology Assistance Projects ................................................................................................. 31

NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-3

Assistive Technology Technical Assistance Projects Assistive Technology Technical Assistance Projects

Virginia

Technical Assistance Project

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)

1700 North Moore Street, Suite 1540

Arlington, VA 22209

resnata@resna.org

www.resna.org/taproject

Principal Investigator: M. Nell Bailey

Public Contact: 703/524-6686, ext. 305 (V); 703/524-6639 (TTY); Fax: 703/524-6630

Project Number: H224B020001

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 02 $525,000; FY 03 $525,000

Abstract: This project assists the 56 state Assistive Technology Act (AT Act) grantees in reducing

barriers and increasing access to AT devices and services for consumers with disabilities of all ages

through capacity building initiatives. The needs of the state AT Act grantees are continually assessed

and plans are tailored to provide timely, responsive, and proactive technical assistance to meet those

needs. Delivery strategies include onsite visits, training by peers (States Helping States) and expert

consultants, national meetings focused on project implementation issues, publication development on

grantees’ impact, models of best practice and policy issues, online services, and other communication

tools. The project maintains a content-rich, accessible web site that serves as the grantees’ prime

resource for information dissemination. Areas of the web site include a Policy Information Pipeline,

links to other related resources, and a private area designated specifically for grantees to share and

exchange information. A reference library on the web contains publications and documents that can be

easily accessed and downloaded.
9-4 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

Alternative Financing Programs Alternative Financing Programs

Delaware

Delaware Assistive Technology Loan Fund

State of Delaware

Department of Labor, Division of Vocational Rehabilitation

4425 North Market Street

Wilmington, DE 19802

edwin.tos@state.de.us

Principal Investigator: Edwin Tos

Public Contact: Griff Campbell, Program Specialist, 302/761-8275; Fax: 302/761- 6611

Project Number: H224C030027

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $889,687

Abstract: The Delaware Assistive Technology Loan Fund reflects the influence of successful loan

programs in other states as well as the consensus of the many Delaware stakeholders involved in its

conceptualization. The project model, in which the Delaware Division of Vocational Rehabilitation

serves as the fiscal agent and the Delaware Assistive Technology Initiative functions as the partnering

community-based organization, provides for a combination of guaranteed and non-guaranteed loans, as

well as interest buy-downs and flexible terms, for the purchase of all forms of AT, home modifications,

and vehicle modifications.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-5

Alternative Financing Programs

Florida

FAAST Loan Fund Alternative Financing Program

Florida Department of Education: Division of Vocational Rehabilitation

Florida Alliance for Assistive Services and Technology, Inc

325 John Knox Road, Building B

Tallahassee, FL 32303

faast@faast.org

faast.org

Principal Investigator: Terry Ward, PhD, 850/487-3278

Public Contact: Lennie Larson, Loan Fund Director, 888/788-9216 (V/TTY, in state, information and

referral only); 850/487-3278 (V/TTY); 850/922-5951 (TTY); Fax: 850/487-2805

Project Number: H224C030018

Start Date: October 1, 2003

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $1,270,981

Abstract: This project expands a consumer directed AFP for the state of Florida that increases access

to and funding for AT. The Florida Alliance for Assistive Services and Technology (FAAST) assures

that Floridians with disabilities, and their family members, continue to obtain low-interest, longer-term

loans that enable them to select and purchase AT and services. FAAST has partnered with the Florida

Department of Education, the Florida Association for Centers for Independent Living (FACIL), and

the Florida Independent Living Centers (FILC). The Centers are the focal point of consumer counseling regarding application, selection of devices and services, and assistance with completion of paperwork. With full funding, FAAST is able to expand the statewide AFP with the involvement from the

entire network of FACIL, FAAST regional centers, and the consumer driven FAAST Loan Fund

stakeholders.
9-6 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

Alternative Financing Programs

Georgia

Credit-Able, Georgia’s Alternative Financing Program

Georgia Department of Labor

Vocational Rehabilitation Program

AT Unit Tools for Life

1700 Century Circle, Suite 300

Atlanta, GA 30345

info@gatfl.org

www.gatfl.org

Principal Investigator: Joy Kniskern, 404/638-0387

Public Contact: Rebecca Roper, 800/497-8665 (V, in state only); 404/638-0384 (V); 404/638-0385

(TTY); Fax: 404/486-0218

Project Number: H224C030009

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $1,563,307

Abstract: The Credit-Able Alternative Financiing Program represents the efforts of state agencies and

local organizations to make low-cost financing on assistive technology available to the citizens of

Georgia. Since Georgia does not have a state credit union for residents, Tools for Life partnered with a

number of groups committed to improving the economic literacy, self-sufficiency, its affordable financial services for citizens. Georgians with disabilities can benefit to a significant degree from financial

counseling as an option to increase the likelihood of their success in fulfilling responsibilities as borrowers. These groups formed The GettingAhead Association (TGA) two years ago to address statewide needs for financial education and support among many different populations. Regardless of age,

economic status, education, or geographic location Georgians with disabilities can join TGA for a

$5.00 membership fee, covered by this grant or by a sponsor, which then offers them opportunities to

join one of several participating credit unions. MACO and Gwinnett Federal Credit Union both serve

the entire state regardless of members’ county of residence, and have online financial services. Tools

for Life and its partners are committed to consumer choice and control of programs like Credit-Able.

As the program matures, expanded opportunities occur in every area of program operations: from

selection of assistive technology, decisions about whether to pursue a loan, to leadership opportunities

on the Credit-Able Advisory Group and Loan Guarantee Review Panel, and TGA board or program

staff.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-7

Alternative Financing Programs

Guam

Guam Options for Alternative Loans Assistive Technology (GOAL-AT)

University of Guam

AVP/CEDDARS/GSAT

UOG Station

Mangilao, GU 96923

gsat@ite.net

uog2.uog.edu/uap/gsat.html

Principal Investigator: Heidi E. Farra-San Nicolas, PhD, 671/735-2482 (V)

Public Contact: Michael Terlaje, 671/735-2490, ext. 3 (V); 671/735-2491 (TTY); Fax: 671/734-8378

Project Number: H224C030023

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $508,392

Abstract: This program aims to maximize independence and participation in society by individuals

with disabilities through the establishment of alternative financing mechanisms. Given that Guam is not

entitled to Supplemental Security Income, and Medicaid caps preclude the provisions of waivers,

Guam residents have not had sufficient support through public assistance programs to finance AT

equipment and services. This project funds alternatives to the traditional payment options of public

assistance and self-financing so that individuals with disabilities can acquire AT devices and services.

Goals and objectives of the GOAL-AT Project include: (1) to establish a permanent and separate

account with a financial institution on Guam utilizing a proposal process; (2) to generate policies and

procedures for GOAL-AT; (3) to formulate and disseminate a Request For Proposal for a communitybased organization that has individuals with disabilities involved in decision making at all organizational levels to administer the project; (4) to advertise the availability of the GOAL-AT program and

the applications for loans; (5) to work with interested applicants to determine specific AT needed to

facilitate independence and participation in the community; (6) to provide training on AT for recipients

of a loan on the particular device they acquire to ensure appropriate usage; (7) to provide follow-up

monitoring and technical assistance to recipients of the loan program; and (8) to maintain data and

reporting information on the status and success of program and status of funding.
9-8 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

Alternative Financing Programs

Illinois

TechConnect Low Interest Loan Program

Illinois Department of Human Services

IATP

1 West Old State Capitol Plaza, Suite 100

Springfield, IL 62701

iatp@iltech.org

techconnect.iltech.org

Principal Investigator: Wilhemina Gunther, 217/522-7985

Public Contact: Sue Castles, Loan Program Coordinator, 800/852-5110 (V/TTY, in state only); 217/

522-7985 (V); 217/522-9966 (TTY); Fax: 217/522-8067

Project Number: H224C030026

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $3,228,292

Other funding: FY 03 $1,076,098 (State of Illinois AFP Matching Fund)

Abstract: The Illinois Dept of Human Services’ (DHS) alternative financing program, the

TechConnect Low Interest Loan Program assists individuals with disabilities and their families in

borrowing money to obtain the assistive technology devices and services, including home modifications, they need to learn, work, and live independently in the community. In many cases the

TechConnect Low Interest Loan Program has also assisted individuals with disabilities and their

families to establish a positive credit history. The TechConnect Low Interest Loan Program is targeted

statewide to individuals with disabilities and their families who historically have had difficulty obtaining or repaying traditional bank loans. By lowering interest, offering extended repayment plans, and/or

relaxing standards for determining credit worthiness, individuals with disabilities and their families for

whom a loan would otherwise be completely out of reach now have a chance to finance needed

assistive technology.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-9

Alternative Financing Programs

Iowa

Iowa AFP and Telework Loan Program

Iowa Finance Authority

100 East Grand Avenue, Suite 250

Des Moines, IA 50309

sharon.murphy@ifa.state.ia.us

www.ifahome.com

Principal Investigator: Michael Tramontina, 515/242-4977

Public Contact: Sharon Murphy, Program Administrator, 515/242-4990; Fax: 515/242- 4957

Project Number: H224C030005

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $482,972

Abstract: In an effort to assist individuals with disabilities in Iowa, the State, represented by Iowa

Finance Authority, along with the The Iowa Able Foundation and The Abilities Fund, administer two

separate loan programs that provide loan guarantees and interest rate buy downs on commercial loans

as well as offering non- guaranteed direct-to-consumer loans. The first loan program allows individuals

with disabilities, their guardians, advocates, and representatives, to obtain home modifications and AT

equipment and services to become more independent and productive. The second loan program gives

individuals with disabilities access to the financial resources necessary to purchase computers, software, peripherals, and other equipment deemed necessary to become employed or self-employed

through a home-based or telework setting. The AFP and Telework programs are administered in a

manner that allows consumers to receive technical assistance throughout the application process, a

timely and fair decision making process, and financial products that best meet the situation and need of

the consumer.
9-10 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

Alternative Financing Programs

Kansas

Kansas Alternative Financing Program and Telework Program

University of Kansas Center for Research, Inc.

Schiefelbusch Institute for Life Span Studies

2601 Gabriel Avenue

P.O. Box 738

Lawrence, KS 66045

ssack@ukans.edu

www.atk.lsi.ukans.edu

Principal Investigator: Sara H. Sack, PhD, 620/421-8367

Public Contact: Assistive Technology for Kansans, 800/526-3648 (800/KAN DO IT, in state only)

316/421-8367 (V/TTY); Fax: 316/421-0954 (Fax/TTY)

Project Number: H224C030028

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $7,343,450

Abstract: The Assistive Technology for Kansans project (ATK), coordinated by the University of

Kansas at Parsons, and its non-profit partner, Kansas Assistive Technology Cooperative (KATCO)

operate a financial loan program for the purchase of AT devices and services necessary for independence, inclusion, learning, and employment. The program is directed by persons with disabilities and

provides the financial guarantee necessary for personal financing of devices such as adapted vehicles,

communication devices, hearing and vision aids, powered wheelchairs, scooters, and other mobility

aids. Program development activities include reviewing and implementing additional financing options

that would result in increased consumer choice and control. The KATCO Advisory Board reviews

financing options for the Alternative Finance Program (AFP). The AFP loan program offers consumers access to a low-interest loan fund, a revolving loan fund, and a loan guarantee or insurance program. Dissemination and outreach efforts for the AFP include public service announcements, media

campaigns, informational booths at state and regional meetings, direct mailings, articles in newsletters,

and presentations made to disability and non-disability groups. AT providers and durable medical

equipment vendors are involved in media outreach efforts and are included in public awareness efforts.

Data regarding applicant characteristics, device selection, impact of access to technology, and employment outcomes is collected and shared with a national database. Information and outcomes are shared

with policymakers.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-11

Alternative Financing Programs

Kentucky

Kentucky Assistive Technology Loan Corporation Alternative

Financing Program

Kentucky Department of Vocational Rehabilitation

Cabinet for Workforce Development

209 St. Clair Street

Frankfort, KY 40601

nancye.hansen@mail.state.ky.us

www.kyatloan.org

Principal Investigator: Dave Matheis, 502/564-4440

Public Contact: Nancy Hansen, 859/246-2117; 877/675-0195 (in state only); Fax: 859/246-2124

Project Number: H224C030029

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $142,349

Abstract: Since the summer of 2000,Kentucky Assistive Technology Loan Corporation (KATLC)

and Fifth Third Bank have been providing low interest loans for AT. To date, a total of $672,668 has

been loaned to 97 individuals for vehicle and vehicle modifications, hearing aids, computers and

computer adaptations, wheelchairs and other mobility devices, and prosthetics. KATLC currently has

$1.62 million on deposit at Fifth Third Bank. The consumer-controlled KATLC Board of Directors

has striven to develop an efficient and consumer-friendly loan application process. Through the use of

an e-group and with direct access to Fifth Third loan officers, KA TLC processes applications in a

timely manner, providing an answer in three days or less to the great majority of applicants. In three

short years, KATLC has developed an important place in the continuum of services available to

Kentuckians with disabilities. It has enabled many individuals to obtain the benefits of AT. It has had a

major impact on many lives. With this grant, KATLC is able to further expand its lending capacity and

provide this funding option to more people.
9-12 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

Alternative Financing Programs

Maryland

The Assistive Technology Guaranteed Loan Program: A Model of

Success

State of Maryland

Office for Individuals with Disabilities

ATGLP

2301 Argonne Drive, T17

Baltimore, MD 21218-1696

loans@mdtap.org

www.mdtap.org

Principal Investigator: Michael Dalto

Public Contact: Tony Rice, Assistant Director, 410/554-9233; 800/832-4827; Fax: 410/554-9237

Project Number: H224C030015

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $1,270,981

Abstract: The Assistive Technology Guaranteed Loan Program (ATGLP) provides loan guarantees

and interest buy-downs for AT loans when the end user is a Maryland resident with a disability. The

project introduces partial principal buy-downs as a more cost-effective alternative to interest buydowns. The project’s partnerships institute innovations that make it a national model including: (1)

multiple lenders providing a choice of options to borrowers and the program, and offering the program

the leverage to negotiate better terms among all lenders; (2) exclusive purchase discounts to borrowers;

and (3) increased income and resources for borrowers to help them afford AT. Benefits InfoSource and

the Benefits Resource Center assist borrowers to use SSI and Social Security work incentives to retain

higher cash benefits, while the Maryland Center for Community Development links borrowers with

service providers to establish Individual Development Accounts to provide matching funds for their

savings set aside for AT purchase. Alternative resources for AT evaluation and training are also offered

through No Boundaries, the Columbia Lighthouse for the Blind, and Learning Independence through

Computers.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-13

Alternative Financing Programs

Massachusetts

Massachusetts Assistive Technology Loan Progam

Massachusetts Rehabilitation Commission

Independent Living

27 Wormwood Street, Suite 600

Boston, MA 02210

Karen.Langley@mrc.state.ma.us

Principal Investigator: Karen Langley

Public Contact: 617/204-3623; Fax: 617/727-1354

Project Number: H224C030016

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $1,694,641

Abstract: Massachusetts Assistive Technology Loan Program is a low interest loan program for AT

equipment and services for individuals with disabilities in Massachusetts. This project enhances and

increases the availability of funding for the purchase of these devices and services, and gives control to

the user in the choice of AT equipment and providers. Assistive Technology Access Points (ATAPs)

serve as local sites where people with disabilities can make applications for AT and AT services.

People with disabilities have choice in their ATAP, which includes a range of disability and elder

organizations. The ATAP staff conduct intake, determine program eligibility, and provide resource

information to help the consumer in identifying the AT most suitable to their needs, where to purchase

AT equipment, and how to get the best price. The ATAP submits the request for loan to the community-based organization/lending institution for approval. People with disabilities and family members of

people with disabilities are included in all aspects of the program planning, design, implementation,

oversight, and evaluation. Project funds have been set aside to provide reasonable accommodations to

ensure that individuals with disabilities have access to participate in these activities. Project funds are

also used to contract with Individual Consumer Consultants to be meaningfully involved in a paid

capacity to guarantee substantial consumer involvement from the earliest stages of the program.
9-14 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

Alternative Financing Programs

Michigan

Michigan Assistive Technology Loan Fund

Department of Career Development/Rehabilitation Services

Community Development Division

780 West Lake Lansing Road, Suite 200

Lansing, MI 48823

miatloanfund@aol.com

www.mi-atlf.org

Principal Investigator: Norm DeLisle, 517/333-2477

Public Contact: Kathryn Wyeth, Operations Director, 517/333-2477, ext. 35; Fax: 517/333-2677

Project Number: H224C030022

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $635,490

Abstract: Individuals with disabilities in Michigan are the target group of the fund, the goal of which

is that people with disabilities in Michigan are able to obtain, either through loans or through other

means, AT equipment and services. Key objectives for this project are: (1) expand the number of local

disability organizations serving as counseling and intake sites; (2) expand the outreach of the fund to

underserved populations including minorities, people living in economically disadvantaged areas, and

individuals living in rural communities; and (3) approve loans for 75 people with disabilities to enable

them to purchase AT devices and services that will enable them to achieve increased independence.

The Michigan Assistive Technology Loan Fund is a project of the Michigan Department of Career

Development-Rehabilitation Services, the Michigan Disability Rights Coalition (MDRC), United

Cerebral Palsy of Michigan, which administers the fund, several local disability organizations, and the

Financial Health Credit Union of Lansing (FHCU). The loan fund is governed by MDRC’s Board of

Directors, most of whose members have disabilities and is administered by UCP Michigan. A loan

committee composed of people with disabilities who use AT and two bankers approves loan guarantees.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-15

Alternative Financing Programs

Minnesota

Alternative Funding Mechanism Project

State of Minnesota, Department of Administration

1800 Pioneer Creek Center

Box 310

Maple Plain, MN 55359

info@atmn.org

www.atmn.org

Principal Investigator: Carol Fury

Public Contact: 763/479-8239

Project Number: H224C030030

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $1,270,981

Abstract: This project is managed by Assistive Technology of Minnesota, ATMN, a statewide nonprofit organization. ATMN provides low interest loans to consumers, their families, and employers for

the purchase of AT devices and services. This project expands the financial options available to people

with disabilities for the purchase of AT devices and services. The addition of a revolving loan program

and a loan guarantee provides options to meet the varying financial needs of individuals with disabilities. Who in the past may have been ineligible for a traditional loan. The revolving loan fund provides

ATMN with continued funding, as the revenues generated through the program are reinvested sustaining the program for many years in the future. It is important to expand awareness about the benefits of

AT so that people with disabilities can take advantage of AT devices and services for employment,

mobility, in their homes and their independence. ATMN collaborates with state and local groups to

increase awareness about the benefits of AT. Collaborating with other nonprofit groups and building

new relationships enables ATMN to reach out to all areas and all disability groups in the state.
9-16 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

Alternative Financing Programs

Nebraska

Low Interest Loan Program for the Purchase of Assistive Technology

for Persons with Disabilities

Nebraska Assistive Technology Partnership

Nebraska Department of Education

Vocational Rehabilitation

5143 South 48th Street, Suite C

Lincoln, NE 68516-2204

atp@atp.state.ne.us

www.nde.state.ne.us/ATP/

Principal Investigator: Mark Schultz, Project Director, 402/471-0734

Public Contact: Nancy Noha, 888/806-6287 (V/TTY, in state only); 402/471-0734 (V/TTY); 402/

471-0735 (V/TTY); Fax: 402/471-6052

Project Number: H224C030025

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $635,490

Abstract: The development of an alternative loan financing program in Nebraska provides low

interest loans to qualified individuals with disabilities to increase access to and utilization of AT devices

and AT services. Interest and principal is returned to the original permanent separate account to establish a revolving loan fund in order to make additional loans. The Nebraska Assistive Technology

Partnership contracts with a community based non-profit organization to develop and implement a low

interest revolving loan program. A financial institution provides low interest loans, ranging from 0-3%

interest, to individuals with disabilities and their families. The state and federal match results in an

$847,000 alternative financing loan program that provides for an estimated 100 loans to individuals.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-17

Alternative Financing Programs

New Mexico

New Mexico Alternative Financing Program (NMAFP)

New Mexico Department of Education

Division of Vocational Rehabilitation

New Mexico Technology Assistance Program (NMTAP)

435 Saint Michaels Drive, Building D

Santa Fe, NM 87505

awinnegar@state.nm.us

www.nmtap.com

Principal Investigator: Andy Winnegar, Project Director, 505/954-8521

Public Contact: Caroll Cadena, 800/866-2253 (V/TTY); 800/659-4915 (TTY); 505/954- 8533 (V/

TTY); Fax: 505/954-8562

Project Number: H224C030012

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $1,270,981

Abstract: The NMAFP program provides statewide outreach to increase awareness of the loan program including accessible electronic and printed information to assist users to seek, find, and obtain

loans for assistive technology needs. The NMAFP provides a low interest and interest buy-down

program that involves a loan guarantee to lower rates and allows higher risk loans. The state of the art

accessibility methods regarding outreach, loan processing, and consumer support services are employed including the use of toll-free telephone consulting, and information navigation and accommodation assistance. NMAFP serves persons with disabilities throughout the state regardless of disability or

age. Employees with disabilities may choose to have an employer seek loans through the NMAFP for

job accommodation needs.
9-18 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

Alternative Financing Programs

North Dakota

North Dakota Alternative Financial Loan Program

North Dakota Protection and Advocacy Project

North Dakota Department of Human Services

Interagency Program for Assistive Technology (IPAT)

P.O. Box 743

Cavalier, ND 58220

jlee@polarcomm.com

www.ndipat.org

Principal Investigator: Judith A. Lee, Project Director, 701/265-4807

Public Contact: 800/265-4728 (V/TTY); Fax: 701/239-7229

Project Number: H224C030014

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $1,270,981

Abstract: This project expands personal financing options for North Dakotans with disabilities and

their families for the purchase of AT devices and services by: (1) establishing a guaranteed loan program with lower interest rates and buy-down mechanism for the purpose of purchasing AT; (2) contracting with a community based organization to administer the AFLP to ensure consumer control; (3)

developing and implementing a statewide public awareness and information dissemination plan to

market the AFLP; (4) developing and implementing of a plan to address the sustainability and permanence of the AFLP; and (5) developing outcome measurement tools and reporting systems to provide a

mechanism to measure effectiveness of the program and to monitor and improve the quality of service.

Protection and Advocacy and IPAT’s critical partners in the establishment of the North Dakota AFLP

include: (1) a community-based organization, North Dakota Association for the Disabled; (2) the IPAT

Consumer Advisory Committee, made up entirely of persons or family members with disabilities; (3)

the Bank of North Dakota; (4) Centers for Independent Living; and (5) a financial institution. IPAT

and partners are structured to provide statewide services, reaching consumers in all regions of the rural

state.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-19

Alternative Financing Programs

Northern Mariana Islands

Trankilu: A Northern Mariana Islands Alternative Financing Program

CNMI Governor’s Council on Developmental Disabilities

Building #1312, Capitol Hill

P.O. Box 502565 C.K.

Saipan, MP 96950-2565

straid@cnmiddcouncil.org

www.cnmiddcouncil.org/atstraid/atflash.htm

Principal Investigator: Thomas J. Camacho, Project Director

Public Contact: Project Coordinator, 670/664-7000; Fax: 670/664-7010

Project Number: H224C030031

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $508,392

Abstract: Trankilu (tranquil), a CNMI Alternative Financing Mechanism Program, offers qualified

individuals with disabilities affordable loans to purchase assistive technology, adapted vehicles, and/or

home modifications. Within five years, the goal is to be operating a sustainable $1,000,000 revolving

loan fund and implementing additional programs such as interest buy-down and a loan guarantee.

Trankilu provides assistance to CNMI citizens who wish to build their asset base, financial well being,

and have access to low cost financial service.
9-20 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

Alternative Financing Programs

Oklahoma

Oklahoma Alternative Financing Program

Oklahoma State University

Seretean Wellness Center

1514 West Hall of Fame

Stillwater, OK 74078-2026

mljwell@okstate.edu

okabletech.okstate.edu

Principal Investigator: Linda Jaco

Public Contact: 800/257-1705 (V/TTY); 405/744-9864; Fax: 405/744-2487

Project Number: H224C030003

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $597,361

Abstract: The purpose of this project is to enhance and maintain the existing alternative financing

program, a partnership between ABLE Tech, Oklahoma Assistive Technology Foundation (OkAT),

and BancFirst of Stillwater. OkAT is a community-based organization established and directed by a

majority of persons with disabilities. The overall program goal of the project is to increase access to

and funding of assistive technology devices and services for the targeted population which includes all

Oklahomans with disabilities or their authorized representative. ABLE Tech implements both a lowinterest loan fund and a loan guarantee program. ABLE Tech assures Oklahomans with disabilities,

and their authorized representative, low-interest, longer- term loans with customized underwriting

standards for the purchase of AT. In addition, for Oklahomans that do not meet BancFirst of

Stillwater’s loan criteria, OkAT, under established policies and procedures, can guarantee a low interest

loan for the purchase of AT. All AFP loans, guaranteed or non-guaranteed, have the same low interest

rate of 2% above the Wall Street Journal Daily Prime Interest Rate for a term up to 60 months. The

federal, state, and private funds are deposited into a separate permanent account that is used to leverage

substantial private sector dollars from BancFirst of Stillwater to loan funds to the targeted population

for the purchase of AT. ABLE Tech has already secured state funds, and is working diligently to

secure private foundation funds to be utilized as a match for federal funding.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-21

Alternative Financing Programs

Pennsylvania

Pennsylvania Assistive Technology Alternative Financing Program

Commonwealth of Pennsylvania

Department of Community and Economic Development

Keystone Building

400 N Street

Harrisburg, PA 17120

stachau@amexcenters.com

www.assistive-technology4pa.org/program/index.html

Principal Investigator: Richard Overmoyer, 717/720-1373

Public Contact: Susan Tachau, 484/875-3066; Fax: 484/875-0982

Project Number: H224C030013

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $1,270,981

Abstract: Pennsylvania Assistive Technology Foundation (PATF) administers a low-interest loan

program with a guarantee component for borrowers who require additional support. The guarantee

monies operate as a revolving fund. As guaranteed loans are repaid, equivalent amounts from the fund

are freed up to guarantee new loans. Goals for this project include increasing the total number of new

borrowers by 25 percent to 100; increasing the proportion of minority, limited English-speaking, and

senior citizen participants to 15 percent of this total, making a special outreach effort to older Pennsylvanians (with special emphasis on hearing and vision aids); and maintaining the interest rate charged to

participating borrowers at 3.5 percent for the entire year regardless of market-rate fluctuations. As a

community-based organization, PATF is responsible for conducting and/or overseeing all aspects of the

program in Pennsylvania, including planning and implementing new outreach to older Pennsylvanians,

minority, and limited English-speaking communities. PATF also oversees activities in support of the

program to be carried out under an agreement with the Institute on Disabilities at Temple University.

The Institute provides coordination and training to strengthen the capacity of PATF’s network of

funding assistance centers, provides counseling to individuals regarding other funding sources, and

collects data needed to complete the annual project evaluation. PATF also strengthens its own capacity

to serve the public by adopting new plans for organizational development, diversification of funding,

and better use of information technology.
9-22 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

Alternative Financing Programs

South Carolina

South Carolina Assistive Technology Loan Program (SCAT)

South Carolina Vocational Rehabilitation Department

1410 Boston Avenue

P.O. Box 15

West Columbia, SC 29171

Principal Investigator: Denise Koon, 803/896-6570

Public Contact: Mark Wade, Public Information Director, 803/896-6834 (V/TTY); Fax: 803/896-

6510

Project Number: H224C030024

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $406,714

Abstract: Independence can provide a person with a disability a sense of self- sufficiency and enhanced self-esteem, can define perceived self-worth, and increase their overall sense of well being.

However, independence for citizens with disabilities has not yet been fully realized in South Carolina.

One of the major contributions to this discrepancy is the lack of financial resources. Currently, the

major service programs such as Medicaid, Medicare, and vocational rehabilitation programs cannot

meet the growing demand for AT devices for all citizens with disabilities. These factors only intensify

the financial strain the 800,000 plus South Carolinians with disabilities face when purchasing AT

devices and services. The Alternative Financing Mechanism program addresses these issues by providing the financial support needed to increase access to AT, expand educational opportunities, increase

integration into the workforce, and promote access to daily community living. Through the implementation of the South Carolina Assistive Technology Loan Program, South Carolinians with disabilities,

regardless of age, race, or gender, can apply for loans designed to aid in the purchase of AT devices

and services. The program includes an interest buy-down program and a guaranteed loan program.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-23

Alternative Financing Programs

Utah

Utah Alternative Financing Program

Utah State University

Center for Persons with Disabilities

6835 Old Main Hill

Logan, UT 84322

uatf@cpd2.usu.edu

www.uatf.org

Principal Investigator: Marilyn Hammond, PhD, 435/797-3811

Public Contact: 800/524-5152; 435/797-2025; Fax: 435/797-2355

Project Number: H224C030008

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $254,196

Abstract: This program: (1) expands consumer choice and control of Utah Assistive Technology

Foundation (UATF) services; (2) maintains a zero/low interest buy down program for AT devices and

services; (3) increases the number of approved loans for AT devices and services; (4) develops, implements, and evaluates a targeted outreach initiative to underrepresented populations, thus increasing the

number of individuals in Utah who receive zero/low interest loans to purchase the AT devices and

services they need; (5) increases the endowment fund, enabling the UATF to earn interest that can be

used for future interest buy down and future administrative support; and (6) designs a comprehensive

process and outcome evaluation plan that assists in evaluating the effectiveness of the UATF in meeting its mandate and continuing the consumer-responsive UATF on a permanent basis. Expanding the

current services offered by UATF enables greater numbers of individuals with disabilities to increase

their independence in home, school, work, and community settings.
9-24 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

Alternative Financing Programs

Vermont

Vermont Development Ventures Assistive Technology Loan Fund

Vermont Department of Aging and Disabilities

Agency of Human Services

VTAP

103 South Main Street, Weeks Building

Waterbury, VT 05671-2305

jtucker@dad.state.vt.us

www.dad.state.vt.us/atp

Principal Investigator: Julie Tucker, Project Director

Public Contact: 800/750-6355 (V/TTY, in state only); 802/241-2672 (V/TTY); Fax: 802/241-2174

Project Number: H224C030011

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $635,490

Abstract: The mission of the Vermont Development Ventures Assistive Technology (VDVAT) Loan

Fund is to enhance the physical and economic self-sufficiency of Vermonters with disabilities to the

maximum extent possible through affordable counseling-based lending. To maximize the alternative

financing impact, the VDV AT Loan Fund: (1) creates extensive marketing to reach and provide

information to more Vermonters with disabilities and generate more applications; (2) offers an array of

counseling-based services to help more low-income Vermonters with disabilities qualify for loans; (3)

dedicates additional resources to continually improve products, operations, and efficiencies; (4) increases the number of loans made and dollars distributed; (5) integrates with exisiting funds to achieve

economies of scale, maximize cost-efficiency, and provide seamless service; (6) utilizes the proven

resources of an established community development financial institution with experience in serving

disabled Vermonters for the administration, marketing, origination, underwriting, and loan servicing;

(7) capitalizes on an existing investment in sophisticated to track the impact of the fund; (8) makes

available the full benefits of VDCU’s mission as a community development financial institution to the

disability market.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-25

Alternative Financing Programs

Virgin Islands

Virgin Islands Alternative Financing Program

University of the Virgin Islands

Virgin Islands Center for Excellence in Developmental Disabilities

2 John Brewer’s Bay

St. Thomas, VI 00802

wfrancis@uvi.edu; wevans@uvi.edu

www.uvi.edu/pub-relations/resource.htm

Principal Investigator: Yegin Habtes, 340/693-1323

Public Contact: Wilbert Francis; Wanda Evans, 340/693-1189 (Francis); 340/692- 1919 (Evans); Fax:

340/693-1325

Project Number: H224C030004

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $635,490

Abstract: The main mission of this program is to help the approximately 8,000 US Virgin Islands

(USVI) residents with disabilities purchase AT devices and services that may be required for independence in the home, workplace, and community. The USVI has unique cultural, geographics and

economic barriers that make the acquisition of AT more difficult than in other parts of the United

States. Over 85% of the total population is comprised of a traditionally underrepresented group that is

spread over 4 islands. While nearly half are “native” islanders, many come from surrounding islands/

countries and represent many diverse cultures. Residents of USVI are not beneficiaries of public

programs that often provide AT (i.e., Medicaid). Financial resources for AT in programs such as

independent living are also very limited. This program is implemented in partnership with community

service organizations, local financial institutions, individuals with disabilities, their family members,

guardians, advocates, and the Virgin Islands University Center for Excellence in Developmental

Disabilities.
9-26 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

Alternative Financing Programs

Virginia

Alternative Financing Technical Assistance Project

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)

1700 North Moore Street, Suite 1540

Arlington, VA 22209-1903

www.resna.org/AFTAP

Principal Investigator: Nancy Meidenbauer

Public Contact: 703/524-6686. ext. 304 (V); 703/524-6639 (TTY); Fax: 703/524-6630

Project Number: H224C030002

Start Date: May 1, 2003

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $726,000

Abstract: This project supports states in establishing and maintaining Alternative Financing Programs

(AFP). The purpose of the project is to provide technical assistance (TA) to states in developing AFPs

that reduce barriers to the availability of AT and create new sources of funding for AT services and

devices for people with disabilities of all ages. Technical assistance and information dissemination and

utilization activities have been designed in order to achieve the project’s goals. These goals are: (1) to

provide timely, responsive, and proactive TA using a comprehensive model for delivery of TA, and (2)

to address the TA needs of the states currently receiving Title III funds and those states that are in the

process of preparing applications for AFP. The delivery strategies include on-site visits by expert

consultants; a national meeting focused on issues related to developing, implementing, and maintaining

financial loan programs; targeted research publications; and electronic services. A particular focus of

the project is to revise the web-based data collection instruments in use today to increase their usability

and validity in collecting uniform data across state programs. The project works to streamline the data

collection process and analyzes the data collected to highlight trends and determine the outcomes and

impact of the loan programs.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-27

Alternative Financing Programs

Virginia

Virginia Alternative Financing Program

Virginia Department of Rehabilitative Services

Virginia Assistive Technology System (VATS)

8004 Franklin Farms Drive

P.O. Box K091

Richmond, VA 23288

loanfund@erols.com

www.vats.org

www.atlfa.org

Principal Investigator: Kenneth Knorr, 804/662-9995

Public Contact: Mike Scione, 804/662-9993; Fax: 804/662-9478

Project Number: H224C030007

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $4,941,575

Abstract: This project assists individuals with disabilities and their families, and eligible businesses, to

acquire adaptive technology devices and equipment, to purchase vehicles with modifications, and to

obtain home modifications for accessibility. Funds are also utilized to demonstrate assistive technology

and rehabilitation engineering, assessment services, and short-term equipment loans. Services are also

available at three regional loan application centers. This project is a collaboration of the Virginia

Assistive Technology System and the Assistive Technology Loan Fund Authority.
9-28 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

Alternative Financing Programs

Washington

Washington Assistive Technology Alternative Financing Project

Washington State Department of Community Trade & Economic Development

3670 Stone Way North

Seattle, WA 98103

fpennell@watf.org

www.watf.org

Principal Investigator: Nancy Hanna, 360/725-2856

Public Contact: Frances Pennell, 206/826-1038; Fax: 206/826-1138

Project Number: H224C030032

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $635,490

Abstract: This project provides low interest loans for Washington residents with disabilities for AT

and home and vehicle accessibility modifications. These loans are provided through a direct lending

program operated by The Washington Assistive Technology Foundation (WATF) and through contracts with other commercial lenders potentially including commercial banks, credit unions, and/or

community development financial institutions. Potential borrowers are offered financial counseling and

financial literacy education, information on AT selection, assistance with PASS plan preparation, and

information about, and referral to, appropriate AT professionals and providers. These services are

provided directly by WATF and/or through referral to other state and private entities.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-29

Alternative Financing Programs

Wisconsin

WisLoan: Wisconsin’s Alternative Financing Program

Wisconsin Department of Health and Family Services

Division of Disability and Elder Services

One West Wilson Street, Room 450

P.O. Box 7851

Madison, WI 53707-7851

PelkeRJ@dhfs.state.wi.us

www.wistech.state.wi.us/WisLoan.htm

Principal Investigator: Ralph Pelkey, 608/267-9091

Public Contact: Susan Abbey, 608/266-1794; Fax: 608/267-3203

Project Number: H224C030006

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $2,287,766

Abstract: WisLoan facilitates provision of low-interest loans, made by Marshall & Illsey Bank (M&I),

its banking partner, for the purchase of AT by Wisconsin citizens with disabilities. IndependenceFirst, a

community-based and consumer- controlled organization, manages WisLoan and maintains its partnership with M&I and Wisconsin’s independent living centers to provide statewide consumer access to

WisLoan. AT purchased through the program ranges from hearing aids to mobility equipment. Funding

decisions are made by the WisLoan Board. The Board is comprised of a majority of people who are

geographically representative of the entire state. The program’s goal is to enhance current services by

making available benefits counseling to each applicant and implementing comprehensive follow-up

services to all applicants, regardless of an approved or denied application. These enhancements emphasize the program’s consumer-direction by providing consumers with the tools needed to make informed decisions to direct their care and by strengthening the program’s overall relationship with

existing AT funding sources.
9-30 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

Alternative Financing Programs

Wyoming

Wyoming Technology Access Program

University of Wyoming

Wyoming Institute for Disabilities/WYNOT

P.O. Box 4298

Laramie, WY 82071-4298

wynot.uw@uwyo.edu

wind.uwyo.edu/wynot

Principal Investigator: Keith Miller, PhD, 307/766-2761

Public Contact: 800/861-4312 (V/TTY, in state only); 307/766-2051 (V/TTY); Fax: 307/721-2084

Project Number: H224C030010

Start Date: October 1, 2003

Length: 12 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $167,769

Abstract: In 2001, WYNOT began a collaborative effort with Wyoming Independent Living Rehabilitation, Inc. (WILR), a private non-profit center for independent living, and the First Interstate Bank

of Laramie to initiate an AT alternative financing program. The Wyoming Technology Access Program

(WYTAP) was created, became effective on November 11, 2002 and is currently providing low or no

interest loans to consumers in Wyoming for AT. WIBR serves as the community based organization for

the WYTAP program. Federal funds ensure that WYTAP is a self-sustaining program far into the

future. To obtain those federal funds, the WYTAP program is committed to generating $66,000 in local

non-federal matching funds.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-31

State Technology Assistance Projects State Technology Assistance Projects

Alabama

Alabama Statewide Technology Access and Response Project (STAR)

System for Alabamians with Disabilities

Alabama Department of Rehabilitation Services

2125 East South Boulevard

P.O. Box 20752

Montgomery, AL 36120-0752

tbridges@rehab.state.al.us

www.rehab.state.al.us/star

Principal Investigator: Steve Shivers

Public Contact: Ted Bridges, 800/782-7656 (V, in state only); 334/613-3480 (V); 334/613-3519

(TTY); Fax: 334/613-3485

Project Number: H224A30009

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $520,670; FY 94 $540,000; FY 95 $580,000; FY 96 $536,900; FY 97

$574,900; FY 98 $710,052; FY 99 $730,000; FY 00 $688,624; FY 01 $516,468; FY 02 $344,312

Abstract: This project addresses nine goals: (1) to establish an organizational structure that maximizes

consumer participation; (2) to facilitate interagency collaboration in the development of policies and

procedures concerning technology services; (3) to maximize consumer participation at all levels of

project activities; (4) to establish a statewide consumer and family network; (5) to develop a statewide

consumer-responsive information and referral system; (6) to develop a public awareness campaign to

elevate the understanding of the benefits and use of technology for people with disabilities; (7) to

develop and provide technology training activities for consumers, their families, professionals, employers, and the general public regarding technology-related issues; (8) to advance positive policy and

funding changes that improve the procurement of and access to technology devices and services; and

(9) to develop and implement a project evaluation system and conduct ongoing needs assessment.
9-32 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Alaska

Assistive Technologies of Alaska

Alaska Department of Labor and Workforce Development

Division of Vocational Rehabilitation

1016 West Sixth, Suite 205

Anchorage, AK 99501

james_beck@labor.state.ak.us

www.labor.state.ak.us/at/index.htm

Principal Investigator: Jim Beck

Public Contact: 800/478-4378 (V/TTY, in state only); 907/269-3569 (V/TTY); Fax: 907/269-3632

Project Number: H224A990001

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $563,052; FY 91 $565,205; FY 92 $595,000; FY 93 $748,000; FY 94

$749,298; FY 95 $749,298; FY 96 $693,618; FY 97 $731,618; FY 98 $548,714; FY 99 $368,000; FY

00 $365,809; FY 01 $365,809; FY 02 $365,809

Abstract: Assistive Technologies of Alaska (ATA) is a systems change project funded under the

authority of the Tech Act. ATA has worked to establish a statewide, consumer-responsive system to

improve access to AT. The project has responded to the needs of Alaskans with disabilities by creating

training tools and resource documents; establishing a guaranteed loan program; achieving passage of

an AT consumer protection law; and setting up a statewide library system for access to technology. In

the last two years, the project is transitioning services to other permanent programs.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-33

State Technology Assistance Projects

American Samoa

American Samoa Assistive Technology Service (ASATS) Project

Division of Vocational Rehabilitation

Department of Human Resources

Pago Pago, American Samoa 96799

edperei@blueskynet.as

Principal Investigator: Pete P. Galea’i

Public Contact: Edmund Pereira, Project Director, 011/684/699-1529 (V); 011/684/233-7874 (TTY);

Fax: 011/684/699-1376

Project Number: H224A30014

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $139,200; FY 94 $150,000; FY 95 $150,000; FY 96 $150,000; FY 97

$150,000; FY 98 $210,000; FY 99 $105,000; FY 00 $150,000; FY 01 $105,000; FY 02 $105,000

Abstract: This project addresses four goals: (1) identification, training, and support of people with

disabilities to provide direction and guidance to the American Samoa Assistive Technology Project; (2)

development and implementation of a system for individual and program needs assessment for AT; (3)

development and promotion, in collaboration and in partnership with existing agencies, of a consumer

responsive, culturally appropriate assistive technology service-delivery system; and (4) development

and implementation of a model multiagency information, education, and public awareness system.
9-34 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Arizona

Arizona Technology Access Program (AzTAP)

Northern Arizona University

Institute for Human Development

4105 North 20th Street, Suite 260

Phoenix, AZ 85016

jill.oberstein@nau.edu

www.nau.edu/ihd/aztap

Principal Investigator: Jill S. Oberstein, Project Director

Public Contact: 800/477-9921 (V); 602/728-9534 (V); 602/728-9536 (TTY); Fax: 602/728-9535

Project Number: H224A40002

Start Date: October 1, 1994

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 94 $507,916; FY 95 $550,000; FY 96 $509,130; FY 97 $547,130; FY 98

$675,531; FY 99 $654,103; FY 00 $654,103; FY 01 $654,103; FY 02 $490,000; FY 03 $490,577

Abstract: This program increases access to AT services and devices for people with disabilities and

their families and facilitates the development of a coordinated, consumer-responsive AT servicedelivery system. The program includes seven goals: (1) to establish a program infrastructure that is

consumer responsive and promotes system change; (2) to increase consumer involvement; (3) to

increase interagency collaboration and coordination; (4) to increase awareness of the needs for, and

efficacy of, AT services and devices; (5) to increase the competencies and skills of providers and

consumers of AT services and devices; (6) to improve program and fiscal resources; and (7) to develop

and implement protection and advocacy services in support of the program. Priority activities include:

information and referral, training and technical assistance, outreach to underrepresented populations,

funding and policy analysis, advocacy, and research.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-35

State Technology Assistance Projects

Arkansas

Arkansas Increasing Capabilities Access Network (ICAN)

Arkansas Rehabilitation Services

Department of Workforce Education

2201 Brookwood Drive, Suite 117

Little Rock, AR 72202

bmgullett@ars.state.ar.us

www.arkansas-ican.org

Principal Investigator: Barbara Gullett

Public Contact: 800/828-2799 (V/TTY, in state only); 501/666-8868 (V/TTY); Fax: 501/666-5319

Project Number: H224A90020

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $503,811; FY 90 $506,078; FY 91 $551,078; FY 92 $725,000; FY 93

$773,929; FY 94 $835,000; FY 95 $835,000; FY 96 $772,951; FY 97 $579,713; FY 98 $386,476; FY

99 $386,476; FY 00 $386,476; FY 01 $386,476; FY 02 $386,476; FY 03 $386,476

Abstract: This project’s activities and objectives include maintaining a clearinghouse for technology,

expanding funding alternatives for technology, creating a consumer-responsive technology system

through legal remedies, expanding outreach programs, increasing system capacity through education

across professional and technical disciplines, and providing information and referral services.
9-36 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

California

California Assistive Technology System (CATS)

California Department of Rehabilitation

External Affairs/Independent Living Division

2000 Evergreen

P.O. Box 944222

Sacramento, CA 94244-2220

bscwesi@dor.ca.gov; rharring@dor.ca.gov

www.atnet.org

Principal Investigator: Benjamin Harville, 916/263-8950

Public Contact: Olivia Wetherbee; Edwina Brock, 916/263-9842(V); 916/263-8685 (TTY); Fax:

916/263-7467

Project Number: H224A30008

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $550,000; FY 94 $680,000; FY 95 $900,000; FY 96 $833,000; FY 97

$871,121; FY 98 $1,337,103; FY 99 $1,315,675; FY 00 $1,315,675; FY 01 $986,765; FY 02

$657,838

Abstract: This project is administered by a unit within the lead agency, Department of Rehabilitation.

It is advised by an Assistive Technology Advisory Committee (ATAC), a majority of whose members

are consumers. The unit administers a transportation and AT loan guarantee program. The unit contracts with other entities to provide advocacy services, outreach, and training for underserved and rural

populations; establish AT centers in rural counties; and establish a nonprofit organization to conduct

other project activities and continue the project when grant funding ends. The nonprofit unit (AT

Network) operated by the California Foundation for Independent Living Centers (CFILC) includes a

toll-free AT information and referral service (800/390-2699 [V] and 800/900-0706 [TTY], in state

only), a project web site, an AT news service, public awareness and marketing activities, interagency

coordination, and coordination of system change activities.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-37

State Technology Assistance Projects

Colorado

Colorado Assistive Technology Project (CATP)

University of Colorado Health Sciences Center

Assistive Technology Partners

1245 East Colfax Avenue, Suite 200

Denver, CO 80218

cathy.bodine@uchsc.edu

www.uchsc.edu/atp

Principal Investigator: Cathy Bodine, Project Director, 303/315-1281

Public Contact: 800/255-3477 (in state only); 303/315-1280 (V); 303/837-8964 (TTY); Fax: 303/

837-1208

Project Number: H224A40014

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $540,140; FY 90 $542,571; FY 91 $577,571; FY 92 $609,538; FY 93

$690,407; FY 94 $780,000; FY 95 $780,000; FY 96 $722,000; FY 97 $541,529; FY 98 $361,019; FY

99 $361,019; FY 00 $361,018; FY 01 $361,019; FY 02 $361,019; FY 03 $361,019

Abstract: This project’s activities and objectives include a network of Technology Outreach Centers

throughout the state and a central AT resource center. Project activities include information, referral,

public awareness, training, technical assistance, and electronic networking linkages between local

agencies and the state. Systems-change activities include a task force on policy review and analysis,

ongoing advocacy education, and direct advocacy services through a contract with the state protection

and advocacy system.
9-38 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Connecticut

Connecticut Assistive Technology Project

Connecticut Department of Social Services

Bureau of Rehabilitation Services

25 Sigourney Street, 11th Floor

Hartford, CT 06106

DrJohnF@aol.com

www.techact.uconn.edu

Principal Investigator: John M. Ficarro

Public Contact: 800/537-2549 (in state only); 860/424-4881 (V); 860/424-4839 (TTY); Fax: 860/

424-4850

Project Number: H224A20013

Start Date: October 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $525,000; FY 93 $554,000; FY 94 $580,000; FY 95 $520,000; FY 96

$500,000; FY 97 $538,000; FY 98 $651,365; FY 99 $629,937; FY 00 $472,453; FY 01 $314,969; FY

02 $314,969

Abstract: This program provides Connecticut residents with disabilities a single point of entry for

advocacy, information and referral, peer counseling, and access to objective expert advice and consultation. This system is founded on the principles of ready access to available technology, informed

choice, coordination, and maximum use of available resources and knowledge. The project’s lowinterest AT revolving loan fund serves as an alternative funding mechanism for individuals ineligible

for existing funding streams. The project has developed an equipment recycling program and is the

primary sponsor of an annual AT trade fair. Finally, the program is supported by an extensive training,

education, and public awareness component.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-39

State Technology Assistance Projects

Delaware

Delaware Assistive Technology Initiative (DATI)

Center for Applied Science and Engineering

University of Delaware

Alfred I. duPont Hospital for Children

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899-0269

dati@asel.udel.edu

www.asel.udel.edu/dati

Principal Investigator: Beth A. Mineo Mollica, PhD, 302/651-6836

Public Contact: Carmen Taylor-Acevedo, Staff Assistant, 800/870-DATI (V/TTY, in state only); 302/

651-6790 (V); 302/651-6794 (TTY); Fax: 302/651-6793

Project Number: H224A10005

Start Date: September 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $501,562; FY 92 $505,146; FY 93 $550,616; FY 94 $620,000; FY 95

$620,000; FY 96 $573,934; FY 97 $611,928; FY 98 $695,827; FY 99 $521,870; FY 00 $347,921; FY

01 $347,914; FY 02 $347,914; FY 03 $347,914

Abstract: The DATI project has established county resource centers in each of Delaware’s three

counties. These centers serve as information and equipment resource sites, offering short-term equipment loans, training and demonstration workshops, and regular informational mailings. DATI also

offers a quarterly newsletter featuring articles on funding, equipment recycling, and general AT information. DATI assists consumers in locating funding for AT devices and services. Collaboration among

existing state agencies and consumer groups has enhanced assistive technology promotion further

throughout the state.
9-40 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

District of Columbia

University Legal Services AT Program for the District of Columbia

University Legal Services

220 I Street Northeast, Suite 130

Washington, DC 20002

atpdc@uls-dc.com

www.atpdc.org

Principal Investigator: Alicia C. Johns, 202/547-0198, ext. 134

Public Contact: Information Specialist, 202/547-0198 (V); 202/547-2657 (TTY); Fax: 202/547-2662

Project Number: H224A30001

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $500,000; FY 94 $550,180; FY 95 $565,000; FY 96 $523,015; FY 97

$557,503; FY 98 $632,503; FY 99 $616,143; FY 00 $616,143; FY 01 $462,107; FY 02 $308,072; FY

03 $308,072

Abstract: This project’s activities are designed to empower individuals with disabilities; to promote

consumer involvement and advocacy; to provide information, referral, and training as they relate to

accessing assistive technology services and devices; and to identify and improve access to funding

resources. Activities focus on increasing access to AT devices and services for school age children,

public awareness, and demonstrations targeting people who are underserved. The program collaborates

with public and private entities, conducts advocacy training specifically for consumers with disabilities,

and implements systems change activities that increase access to, provision of, and funding for AT

devices and services on a permanent basis. This project operates a Resource Center, a reduced-interest

AT financial loan program, and a short-term AT equipment lending program.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-41

State Technology Assistance Projects

Florida

Florida Alliance for Assistive Service and Technology (FAAST), Inc.

FAAST, Inc.

325 John Knox Road, Bldg. B

Tallahassee, FL 32303-4151

faast@faast.org

faast.org

Principal Investigator: Terry Ward, PhD

Public Contact: Ben Greve, Program Manager, 800/322-7881 (V/TTY, in state, information and

referral only); 850/487-3278 (V/TTY); 850/487-2850 (TTY/Fax); Fax: 850/487-2805

Project Number: H224A000001

Start Date: July 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $550,000; FY 93 $995,000 (includes carryover funding); FY 94 $730,000;

FY 95 $700,000; FY 96 $647,983; FY 97 $685,983; FY 98 $922,107; FY 99 $902,700; FY 00

$675,509; FY 01 $450,340; FY 02 $450,340; FY 03 $450,340

Abstract: FAAST, designed by and for consumers in Florida, provides comprehensive consumer

outreach, awareness, and services. Its consumer-directed board is composed of 51-percent people with

disabilities or family members of individuals with disabilities. Services are provided through four

strategically located regional centers in Tallahassee, Jacksonville, Tampa, and Miami. FAAST’s

mission is to enhance the quality of life for all Floridians with disabilities by promoting access to,

awareness of, and advocacy for AT. Through a seamless supportive network between Florida business

and government, FAAST provides AT products and services that enable people with disabilities to

participate fully in independent living, education, work, and recreation.
9-42 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Georgia

Georgia Tools for Life

Georgia Department of Labor

Vocational Rehabilitation Program, Assistive Technology Unit

1700 Century Circle, Suite 300

Atlanta, GA 30345

info@gatfl.org

www.gatfl.org

Principal Investigator: Joy Kniskern

Public Contact: Rebecca Roper, 800/497-8665 (V, in state only); 404/638-0384 (V); 404/638-0385

(TTY); Fax: 404/486-0218

Project Number: H224A10001

Start Date: September 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $519,474; FY 92 $520,000; FY 93 $585,000; FY 94 $729,924; FY 95

$729,924; FY 96 $675,683; FY 97 $713,683; FY 98 $888,822; FY 99 $666,617; FY 00 $444,411; FY

01 $444,411; FY 02 $444,411; FY 03 $444,411

Abstract: The Georgia Tools for Life program includes training at all levels, public awareness, funding policy analysis, direct services, device lending libraries, and program evaluation. The hub of Tools

for Life is operated out of the Georgia Division of Rehabilitation Services. Tools for Life is responsible

for seven areas of coordination: (1) policy analysis and improved service delivery, (2) coordination

with consumers, (3) coordination among public and private organizations, (4) training and technical

assistance, (5) public awareness and an information and referral network, (6) advocacy, and (7) consumer-responsive program evaluation. Tools for Life also coordinates four Assistive Technology

Resource Centers, the ReBoot Recycling Service, and is helping to create the GettingAhead Association for individuals who are improving their economic self-sufficency. The association includes financial services such as economic literacy assistance.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-43

State Technology Assistance Projects

Guam

Guam System for Assistive Technology (GSAT)

AVP/CEDDARS/GSAT

University of Guam, UOG Station

Mangilao, GU 96923

gsat@ite.net

uog2.uog.edu/uap/gsat.html

Principal Investigator: Heidi E. Farra-San Nicolas, PhD, 671/735-2482 (V)

Public Contact: Michael Terlaje, 671/735-2490, ext. 3 (V); 671/735-2491 (TTY); Fax: 671/734-8378

Project Number: H224A40003

Start Date: October 1, 1994

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 94 $150,000; FY 95 $150,000; FY 96 $150,000; FY 97 $150,000; FY 98

$150,000; FY 99 $150,000; FY 00 $105,000; FY 01 $105,000; FY 02 $105,000; FY 03 $105,000

Abstract: This project has established a consumer-responsive, comprehensive, territory-wide program

of technology-related assistance for people with disabilities to assist in overcoming Guam’s unique

challenges, including limited local funding, lack of trained personnel, few markets and market incentives, limited information, and limited eligibility for specific federal funding. Additionally, the provision

of AT devices and services in the Pacific Basin presents many unique challenges. Small island systems,

such as Guam, have limited budgets, and a harsh tropical-island environment (salt water, high humidity, and rough terrain) that creates difficulties for equipment repair and maintenance. The remote

geographic location makes procurement, adjustments, and custom modifications to assistive technology

equipment extremely difficult and costly. The project emphasizes and supports systems change and

advocacy activities that serve to build capacity within existing programs and with people with disabilities of all ages. GSAT is administered locally by Guam University’s Center for Excellence in Developmental Disabilities Education, Research, and Service (CEDDERS).
9-44 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Hawaii

Assistive Technology Resource Centers of Hawaii (ATRC)

414 Kuwili Street, Suite 104

Honolulu, HI 96817

atrc@atrc.org

www.atrc.org

Principal Investigator: Barbara Fischlowitz-Leong, Executive Director, 808/532- 7110

Public Contact: 800/645-3007 (V/TTY, in state only); 808/532-7110 (V/TTY); Fax: 808/532-7120

Project Number: H224A10023

Start Date: October 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $530,926; FY 92 $530,926; FY 93 $530,926; FY 94 $660,895; FY 95

$678,000; FY 96 $627,618; FY 97 $665,618; FY 98 $754,956; FY 99 $566,217; FY 00 $377,478; FY

01 $377,478; FY 02 $377,478; FY 03 $377,478

Abstract: Assistive Technology Resource Centers of Hawaii (ATRC) provides information and

training on AT devices, services, and funding resources for the residents of Hawaii and also works

nationally as part of the Association of Tech Act Projects. The organization conducts presentations and

demonstrations in the community to increase AT awareness and promote self-advocacy among people

with disabilities. ATRC offers classes on basic software and AT software in the state-of-the-art Technology Center. Open lab time is available for personal computer use. ATRC operates six equipment

loan banks throughout Hawaii for individuals to try out AT devices. For eligible individuals wanting to

purchase AT devices, ATRC offers financial loans. The agency collaborates with educators, independent living specialists, employment counselors, medical professionals, and others to ensure individuals

have access to the technology they want and need. An advisory council to the organization provides

input from the prospective of consumers and service providers, and the organization collaborates with

state agency officials through its Policy Coordinating Committee, members of which are appointed by

the Governor.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-45

State Technology Assistance Projects

Idaho

Idaho Assistive Technology Project

University of Idaho

129 West Third Street

Moscow, ID 83843-4401

rseiler@uidaho.edu

www.educ.uidaho.edu/idatech

Principal Investigator: Ron Seiler, Project Director

Public Contact: Susan House, Information Specialist, 800/432-8324 (V/TTY); 208/885-3559 (V/

TTY); Fax: 208/885-3628

Project Number: H224A20017

Start Date: September 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $529,436; FY 93 $676,680 (includes carryover funding); FY 94 $620,000;

FY 95 $634,246; FY 96 $587,115; FY 97 $625,115; FY 98 $719,907; FY 99 $698,479; FY 00

$539,000; FY 01 $349,240; FY 02 $349,240; FY 03 $349,240

Abstract: The Idaho Assistive Technology Project is managed by the Center on Disabilities and

Human Development at the University of Idaho. The project engages in systems change activities,

training, materials development, information dissemination, and advocacy activities directed at increasing the availability of assistive devices and services to Idahoans who have disabilities. A customer

board directs the overall activities of the project and engages in a process of barrier identification and

elimination. Major project components include training for consumers and service providers about AT,

funding and loan programs for AT, advocacy, direct service provision through five regional resource

centers, and systems change that addresses policy, practice, and legislation.
9-46 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Illinois

Illinois Assistive Technology Project (IATP)

IATP

1 West Old State Capitol Plaza, Suite 100

Springfield, IL 62701

iatp@iltech.org

www.iltech.org

Principal Investigator: Wilhelmina Gunther

Public Contact: Sherry Edwards, 800/852-5110 (V/TTY, in state only); 217/522- 7985 (V/TTY);

217/522-9966 (TTY); Fax: 217/522-8067

Project Number: H224A90038

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $515,300; FY 90 $517,619; FY 91 $617,619; FY 92 $620,000; FY 93

$750,000; FY 94 $923,271; FY 95 $923,271; FY 96 $833,121; FY 97 $640,997; FY 98 $427,332; FY

99 $647,332; FY 00 $427,332; FY 01 $427,332; FY 02 $427,332; FY 03 $427,332

Abstract: This project’s activities and objectives include information and referral services highlighting

available technology and services, comprehensive advocacy training for people with disabilities and

their families, and opportunities to explore AT options in the demonstration center. The project has

statewide consumer involvement. Consumers have input into all facets of the project’s operation, from

establishing goals and objectives to implementing the activities.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-47

State Technology Assistance Projects

Indiana

ATTAIN, Inc. (Assistive Technology Through Action in Indiana,

Incorporated)

ATTAIN, Inc.

32 E. Washington Street, Suite 1400

Indianapolis, IN 46204

attain@attaininc.org

www.attaininc.org

Principal Investigator: Gary Hand, Executive Director

Public Contact: Lilia Teninty, 317/486-8808 (V); 317/486-8809 (TTY); 800/528- 8246 (in-state

only); Fax: 317/486-8809

Project Number: H224A00027

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $521,480; FY 91 $541,277; FY 92 $565,277; FY 93 $660,288; FY 94

$726,892; FY 95 $726,892; FY 96 $672,877; FY 97 $710,877; FY 98 $533,158; FY 99 $355,439; FY

00 $355,439; FY 01 $355,439; FY 02 $355,439; FY 03 $355,439

Abstract: The mission of ATTAIN, Inc. is to ensure that all people with disabilities in Indiana have

access to assistive technology. ATTAIN, Inc. provides direct service programs and promotes systems

change in the public and private sectors to promote the availability and use of assistive technologies.

Direct service programs include Empowerment and Advocacy trainings, group technology trainings,

information and referral services, assistive technology assessments, individual case advocacy and an

Equipment Exchange Network. ATTAIN, Inc. serves individuals of all ages and all disabilities.
9-48 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Iowa

Iowa Program for Assistive Technology (IPAT)

Iowa University Center for Excellence in Disabilities

Center for Disabilities and Development

100 Hawkins Drive, Room S295

Iowa City, IA 52242-1011

infotech@uiowa.edu

www.uiowa.edu/infotech

Principal Investigator: Jane Gay, RN, 319/356-4463

Public Contact: Ann Dudler, 800/331-3027 (V/TTY); 319/356-4463 (V); 877/686-0032 (TTY); Fax:

319/356-8284

Project Number: H224A00028

Start Date: April 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $557,322; FY 91 $594,287; FY 92 $595,289; FY 93 $700,314; FY 94

$735,000; FY 95 $735,000; FY 96 $680,382; FY 97 $718,382; FY 98 $538,787; FY 99 $359,191; FY

00 $359,191; FY 01 $359,191; FY 02 $359,191; FY 03 $359,191

Abstract: This project conducts awareness and training programs and collaborates with other systemschange efforts. The information and referral portion of the Iowa program, InfoTech, provides information on new and used adaptive equipment, funding information, and a newsletter. The goals and

objectives of the Iowa Program are developed and implemented through an extensive process that

involves consumers, advocacy organizations, private and public service providers, regional and state

agencies, third-party payers, and entities not traditionally associated with AT services.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-49

State Technology Assistance Projects

Kansas

Assistive Technology for Kansans Project

University of Kansas

Life Span Institute

2601 Gabriel Avenue

P.O. Box 738

Parsons, KS 67357

ssack@ku.edu

atk.ku.edu

Principal Investigator: Charles R. Spellman, EdD; Sara H. Sack, PhD

Public Contact: 800/526-3648 (800/KAN DO IT, in state only); 620/421-8367 (V/TTY); Fax: 316/

421-0954 (Fax/TTY)

Project Number: H224A30013

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $515,000; FY 94 $529,999; FY 95 $550,000; FY 96 $513,758; FY 97

$551,758; FY 98 $665,404; FY 99 $643,976; FY 00 $643,876; FY 01 $483,077; FY 02 $362,216; FY

03 $362,216

Other funding: FY 93 $89,029 (Kansas Rehabilitation Services); FY 95 $395,000 (KRS); FY 96

$780,000 (KRS); FY 01 $61,906 (KRS); FY 02 $375,000 (KRS); FY 03 $35,000 (Kansas Department of Health & Environment)

Abstract: Through consumer involvement and leadership by the Kansas University Program at

Parsons, this project engages in activities that are designed to result in laws, regulations, policies,

practices, or organizational structures that promote consumer-responsive programs that increase access

to assistive technology devices and services. Through subcontracts with organizations across the state,

the project operates five Regional Assistive Technology Access Sites, provides a toll-free number that

connects callers directly to the appropriate Regional Access Site, manages an Interagency Equipment

Loan System, and leads a policy analysis and legislative alert effort.
9-50 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Kentucky

Kentucky Assistive Technology Service (KATS) Network

KATS Network Coordinating Center

8412 Westport Road

Louisville, KY 40242

katsnet@iglou.com

www.katsnet.org

Principal Investigator: J. Chase Forrester, JD, Project Director

Public Contact: Ronji Dearborn, 800/327-5287 (V/TTY, in state only); 502/327- 0022 (V/TTY);

502/327-9855 (TTY); Fax: 502/327-9974

Project Number: H224A90002

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $535,102; FY 90 $537,510; FY 91 $577,102; FY 92 $680,000; FY 93

$710,108; FY 94 $800,000; FY 95 $800,000; FY 96 $740,552; FY 97 $555,414; FY 98 $370,276; FY

99 $370,276; FY 00 $370,276; FY 01 $370,276; FY 02 $370,276; FY 03 $370,276

Other funding: FY 03 $37,167 (SE-DBTAC)

Abstract: This project is a statewide network of organizations and individuals connecting to create a

consumer-driven, collaborative system to make assistive technology information, devices, and services

easily obtainable for people of any age or disability. In addition to its primary role in the development

and coordination of activities among state agencies and organizations that facilitate access to, provision

of, and funding for AT devices and services, the Coordinating Center staff conducts information and

referral services and disseminates information. Associated organizations provide training activities,

assessments and evaluations, consultations on appropriate technologies, technical assistance, operate an

equipment recycling and lending program and implement a low interest loan program. Consumers

represent a majority of the advisory board membership.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-51

State Technology Assistance Projects

Louisiana

Louisiana Assistive Technology Access Network (LATAN)

LATAN

P.O. Box 14115

Baton Rouge, LA 70898-4115

cpourciau@latan.org

www.latan.org

Principal Investigator: Julie M. Nesbit

Public Contact: Clara Pourciau, 800/270-6185 (V/TTY); 225/925-9500 (V/TTY); Fax: 225/925-

9560

Project Number: H224A10028

Start Date: September 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $502,566; FY 92 $505,398; FY 93 $555,398; FY 94 $631,095; FY 95

$660,000; FY 96 $610,955; FY 97 $648,955; FY 98 $791,475; FY 99 $593,606; FY 00 $395,738; FY

01 $395,738; FY 02 $395,738; FY 03 $395,738

Other funding: FY 03 $1,500,000 (Title III, AT Act)

Abstract: Louisiana Assistive Technology Access Network (LATAN) is an advocacy and systems

change project whose mission is to ensure that Louisiana citizens of all ages with functional limitations

who want AT have what they need and are able to use it. Major program initiatives include: (1) consumer involvement, empowerment, and training; (2) advocacy and systems change; (3) outreach; (4)

interagency coordination; and (5) provider training. Area programs provide the opportunity for

LATAN to reach rural and inner-city areas, where a majority of ethnic minorities and elderly reside.

The project provides information about aids that enable an individual to live at home, work, learn, and

recreate. It also provides information about the services needed to acquire and use these assistive

devices. Members of the project staff provide training that empowers individuals to self-advocate

successfully for the aids they need. LATAN also advocates for increased access to assistive technology

through public and private agencies and entities. Training is provided to increase the skills of case

managers, personal service assistants, rehabilitation counselors, educators, therapists, and other providers and support personnel to recognize the benefits and uses of, and the need for, various types of AT

devices and services. A consumer-majority board directs LATAN.
9-52 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Maine

Maine Consumer Information and Technology Training Exchange

(Maine CITE)

Maine CITE Coordinating Center

46 University Drive

Augusta, ME 04330

kpowers@maine.edu

www.mainecite.org

Principal Investigator: David Noble Stockford, 207/624-6650 (V); 207/624-6800 (TTY)

Public Contact: Kathleen Powers, Project Director, 207/621-3195 (V); 207/621- 3482 (TTY); Fax:

207/621-3193

Project Number: H224A90047

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $541,876; FY 90 $544,315; FY 91 $594,315; FY 92 $650,000; FY 93

$750,000; FY 94 $845,000; FY 95 $845,000; FY 96 $782,000; FY 97 $586,656; FY 98 $391,104; FY

99 $391,104; FY 00 $391,104; FY 01 $391,104; FY 02 $391,104; FY 03 $391,104

Abstract: This project collaborates with various Maine organizations, including centers for independent living, parent training agencies, and nonprofit community programs, to build a statewide network

of information and resources on AT. Project goals are: to promote broader understanding of the benefits and wider availability of AT; to educate people with disabilities, their families, professionals, and

general public in purchasing and using AT; to promote self-advocacy among people with disabilities to

shape public policy that promotes assistive technology and universal design; and to assist public and

private institutions, organizations, and associations in providing the knowledge, skills, and competencies related to AT and universal design to their constituents.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-53

State Technology Assistance Projects

Maryland

Maryland Technology Assistance Program (MD TAP)

Maryland Governor’s Office for Individuals with Disabilities

2301 Argonne Drive, Room T17

Baltimore, MD 21218

rasinski@charm.net

www.mdtap.org

Principal Investigator: Paul Rasinski, Project Director

Public Contact: Patrick McCurdy, 800/832-4827 (800/TECH TAP, V/TTY); 410/554- 9230 (V/

TTY); Fax: 410/554-9237

Project Number: H224A90019

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $500,000; FY 90 $502,250; FY 91 $502,250; FY 92 $671,029; FY 93

$770,000; FY 94 $825,000; FY 95 $825,000; FY 96 $763,694; FY 97 $572,771; FY 98 $381,000; FY

99 $381,847; FY 00 $381,847; FY 01 $381,847; FY 02 $381,847

Abstract: The Maryland Technology Assistance Program (MD TAP) is a part of the Governor’s

Office for Individuals with Disabilities serving individuals of all ages and disabilities. Activities of this

program include conducting a public awareness campaign with a toll-free phone number, maintaining

lending libraries of information and AT devices, and equipment demonstration centers. The program

administers a loan guarantee project, that makes possible low-interest loans for AT to individuals with

disabilities. The program grants funds to private organizations to provide regional coverage of the state

in relation to AT issues.
9-54 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Massachusetts

Massachusetts Assistive Technology Partnership

Children’s Hospital

1295 Boylston Street, Suite 310

Boston, MA 02215

matp@matp.org

www.matp.org

Principal Investigator: Marylyn Howe, Project Director, 617/355-7167 (TTY)

Public Contact: Patricia Hill, 800/848-8867 (V/TTY, in state only); 617/355-7153 (V); 617/355-7301

(TTY); Fax: 617/355-6345

Project Number: H224A00036

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $563,998; FY 91 $593,993; FY 92 $624,062; FY 93 $725,764; FY 94

$811,962; FY 95 $811,962; FY 96 $751,592; FY 97 $789,592; FY 98 $592,194; FY 99 $592,194; FY

00 $394,796; FY 01 $394,796; FY 02 $394,796; FY 03 $394,796

Abstract: The Massachusetts Assistive Technology Partnership (MATP) is a consumer-responsive,

cross-disability, multicultural, statewide project that conducts activities to increase access to AT for

people with disabilities. Activities include public awareness, information services, training and technical assistance, funding and policy analysis, advocacy, and related work to improve services and promote involvement of people with disabilities in AT. Through regional Peer Assistive Technology

Programs, The MATP provides information and referral, peer networking, training, and individual and

systems advocacy. The MATP works closely with people with disabilities, family members, providers,

and state agencies to identify needs and pursue change in the AT service-delivery system. The project

publishes an AT newsletter, pursues remedies of funding and policy barriers, provides training on a

range of AT available and resources for obtaining assistive technology, pursues improvement of

equipment standards, promotes increased availability of services, promotes increased involvement of

people with disabilities in AT services and policy making, and coordinates with related projects in

Massachusetts, regionally, and nationally.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-55

State Technology Assistance Projects

Michigan

Michigan’s Assistive Technology Project

Michigan Disability Rights Coalition

740 West Lake Lansing Road, Suite 400

East Lansing, MI 48823

www.copower.org

Principal Investigator: Harold Wasner, 517/373-3390

Public Contact: Kathryn Wyeth, 800/760-4600 (V/TTY, in state only); 517/333-2477 (V/TTY); Fax:

517/333-2677

Project Number: H224A50009

Start Date: September 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $550,000; FY 93 $885,881 (includes carryover funding); FY 94 $610,000;

FY 95 $850,000; FY 96 $786,837; FY 97 $824,837; FY 98 $1,033,953; FY 99 $1,012,525; FY 00

$759,394; FY 01 $506,263; FY 02 $506,263; FY 03 $506,263

Abstract: Michigan’s AT Project focuses on building the capacity of community- based, local organizations to advocate for the use of AT as a tool for inclusion in all aspects of life. Currently, Michigan’s

AT Project has projects around the state that are creating genuine systems change on a local basis. The

AT Project also supports a web-based system of AT resources and communication networks.
9-56 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Minnesota

Minnesota System of Technology to Achieve Results (STAR) Program

State of Minnesota Department of Administration

309 Administration Building

50 Sherburne Avenue

St. Paul, MN 55155

star.program@state.mn.us

www.admin.state.mn.us/assistivetechnology

Principal Investigator: Chuck Rassbach, 651/297-1554

Public Contact: 800/657-3862 (V, in state only); 800/657-3895 (TTY, in state only); 651/296-7516

(V); 651/296-9478 (TTY); Fax: 651/282-6671

Project Number: H224A90041

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $500,000; FY 90 $502,250; FY 91 $567,250; FY 92 $700,000; FY 93

$750,000; FY 94 $820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $694,268; FY 98 $569,300; FY

99 $379,500; FY 00 $379,500; FY 01 $379,533; FY 02 $379,533

Abstract: This project: (1) provides a toll-free information service for residents of Minnesota; (2)

distributes brochures and other literature; (3) hosts workshops and forums; (4) provides opportunities

for consumer involvement; and (5) assists individuals seeking funding. STAR advocates for policy,

practice, and legislative change regarding access to AT; contracts for mobile outreach projects and legal

advocacy services; and provides grants on a regional basis.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-57

State Technology Assistance Projects

Mississippi

Mississippi Project START (Success Through Assistive/Rehabilitative

Technology)

Mississippi Department of Rehabilitation Services

P.O. Box 1698

Jackson, MS 39215-1000

contactus@msprojectstart.org

www.msprojectstart.org

Principal Investigator: Stephen Power, Project Director

Public Contact: Eugenie Bradshaw, 800/852-8328 (V/TTY, in state only); 601/987- 4872 (V/TTY);

Fax: 601/364-2349

Project Number: H224A00032

Start Date: May 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $521,285; FY 91 $530,000; FY 92 $554,000; FY 93 $594,714; FY 94

$619,430; FY 95 $619,430; FY 96 $573,400; FY 97 $611,400; FY 98 $458,550; FY 99 $305,700; FY

00 $305,700; FY 01 $305,700; FY 02 $305,700

Abstract: Project START is a multifaceted, collaborative effort. The primary components include: (1)

an advisory council that allows for consumer input and the involvement of other relevant agencies,

organizations, and groups; (2) an information clearinghouse that provides people with disabilities, their

families, service providers, and other interested parties with information regarding available AT devices

and services; (3) a training program that ensures that service provider personnel, people with disabilities, and other relevant parties are familiar with the utility and potential of AT devices; (4) a model

service-delivery system that acts as a referral source and concurrent technical resource to existing AT

providers, and provides AT services to people with disabilities ineligible for existing programs; and (5)

an equipment loan program that makes assistive devices available to people with disabilities for trial

periods, for use while their personal equipment is being repaired or replaced, and to service providers

for training and demonstration purposes.
9-58 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Missouri

Missouri Assistive Technology Project

Missouri Department of Labor and Industrial Relations

Governor’s Council on Disability

4731 South Cochise, Suite 114

Independence, MO 64055-6975

matpmo@swbell.net

www.dolir.state.mo.us/matp

Principal Investigator: Diane Golden, PhD, Project Director

Public Contact: 800/647-8557 (V, in state only); 800/647-8558 (TTY, in state only); 816/373-5193

(V); 816/373-9315 (TTY); Fax: 816/373-9314

Project Number: H224A30015

Start Date: September 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $524,488; FY 92 $526,988; FY 93 $550,801; FY 94 $667,121; FY 95

$675,000; FY 96 $689,639; FY 97 $727,639; FY 98 $878,221; FY 99 $658,666; FY 00 $439,111; FY

01 $439,111; FY 02 $439,111; FY 03 $439,111

Abstract: The primary components of this project include: (1) a statewide advisory council established

to provide input from consumers and relevant state agencies; (2) legislative and policy initiatives

including an equipment loan program, an equipment distribution program that provides both adaptive

telephone equipment and adaptive computer equipment, a no-interest or low-interest loan program to

purchase AT, a funding program to provide AT to children to age 21, health care coverage for mandatory infant hearing screenings and initial amplification devices, Medicaid coverage of augmentative

communication devices for adults, an AT lemon law, sales tax exemptions on AT, managed care

reform, and accessible state IT; (3) an information and referral service; (4) individual advocacy services; and (5) a statewide AT conference.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-59

State Technology Assistance Projects

Montana

MonTECH

University of Montana

The Rural Institute

634 Eddy Avenue

Missoula, MT 59812

montech@selway.umt.edu

montech.ruralinstitute.umt.edu/

Principal Investigator: Gail McGregor, Project Director

Public Contact: 800/732-0323 (V/TTY); 406/243-5676 (V/TTY); Fax: 406/243-4730

Project Number: H224A10002

Start Date: September 30, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $550,553; FY 92 $550,553; FY 93 $590,553; FY 94 $675,258; FY 95

$673,058; FY 96 $624,080; FY 97 $663,080; FY 98 $752,408; FY 99 $564,306; FY 00 $376,204; FY

01 $376,204; FY 02 $376,204

Abstract: This project develops a comprehensive statewide system of technology- related assistance to

ensure that all Montanans with disabilities have equitable access to the AT devices and services they

need. Emphasis is on eliminating barriers to obtaining AT, enacting policy change, improving awareness, strengthening consumer and provider networks, and increasing access to funding. The Montana

Consortium for Assistive Technology (MCAT) serves as the program advisory board and offers

opportunities for consumer participation. Activities currently underway include: (1) a comprehensive

equipment demonstration and evaluation center offering hands-on experience with devices to both

consumers and service providers; (2) an AT loan/lease clearinghouse; (3) an information and assistance

service that includes maintenance of a comprehensive database of Montana service programs; (4)

focused outreach activities with the state’s largest minority group, Native Americans; and (5) a web

site. Other activities include a low-interest financial loan program for consumers who do not qualify for

other funding sources, and specialized training programs to increase the skills of professionals providing AT services.
9-60 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Nebraska

Nebraska Assistive Technology Partnership

Nebraska Department of Education

Vocational Rehabilitation

5143 South 48th Street, Suite C

Lincoln, NE 68516-2204

atp@atp.state.ne.us

www.nde.state.ne.us/ATP/

Principal Investigator: Mark Schultz, Project Director, 402/471-0734

Public Contact: Nancy Noha, 888/806-6287 (V/TTY, in state only); 402/471-0734 (V/TTY); 402/

471-0735 (V/TTY); Fax: 402/471-6052

Project Number: H224A90040

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $523,000; FY 90 $525,352; FY 91 $570,352; FY 92 $730,000; FY 93

$766,984; FY 94 $820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $569,300; FY 98 $379,533; FY

99 $379,533; FY 00 $379,533; FY 01 $379,533; FY 02 $379,533; FY 03 $379,533

Abstract: The Partnership provides statewide AT and home modification services for Nebraskans of

all ages and disabilities. The Partnership is a collaboration of private, nonprofit, and governmental

organizations and agencies working together to create a seamless, comprehensive, statewide AT

program. Collaborators include Nebraska’s Departments of Education, Health and Human Services,

Developmental Disabilities, Economic Development, and Vocational Rehabilitation. The collaboration

has resulted in funding for services to help meet the diverse needs of consumers regarding education,

employment, housing, and independent living. These services include assessment, evaluation, fabrication, repair, maintenance, and training. Cost savings have also resulted due to equipment recycling,

identification of appropriate equipment, and cost sharing between partnering agencies. In addition, the

Partnership helps to support demonstration centers, utilizes a peer support network, and sponsors

special events, including technology expos. Training materials have been developed for educators

(three hour instructional unit and special education technical manual), health care professionals, and

insurance reviewers.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-61

State Technology Assistance Projects

Nevada

Nevada Assistive Technology Collaborative

Dept. of Human Resources

Office of Disability Services

3656 Research Way suite 32

Carson City, NV 89706

Kpreston@DHR.State.NV.US

hr.state.nv.us/directors/disabilitysvcs/dhr_ads.htm

Principal Investigator: Todd Butterworth

Public Contact: Kelleen Preston, 888/337-3839 (V, in state only); 775/687-4452 (V); 775/687-3388

(TTY); Fax: 775/687-3292

Project Number: H224A00037

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $560,884; FY 91 $580,047; FY 92 $594,368; FY 93 $624,588; FY 94

$675,046; FY 95 $675,046; FY 96 $624,883; FY 97 $662,883; FY 98 $497,162; FY 99 $331,442; FY

00 $331,442; FY 01 $331,442; FY 02 $331,442

Abstract: The Nevada Project is accomplishing 15 major goals in systems change that have been

established in response to identified needs in consultation with the state’s consumer-directed executive

board. Additionally, the project trains 400 consumers in the use of technology; a minimum of 1,800

consumers in self-advocacy skills; 550 families in applying technology to the needs of a family member with a disability; and a minimum of 5,730 cross-disciplinary university undergraduates in the fields

of medicine, health, education, rehabilitation, gerontology, engineering, speech pathology and audiology, and counseling in AT and cultural awareness. The project provides information and referral and

other awareness services to a minimum of 10,000 consumers over the life of the project and evaluates

the impact of those services through follow-up and satisfaction surveys.
9-62 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

New Hampshire

New Hampshire Technology Partnership Project

University of New Hampshire Technology Partnership

Institute on Disability/UCE

The Concord Center

Ten Ferry Street #14

Concord, NH 03301-5019

sonke.dornblut@unh.edu

iod.unh.edu/projects/technology_policy.html

Principal Investigator: Jan Nisbet, PhD; Terese Wilkomm, PhD, 603/862-4320 (V/TTY)

Public Contact: Sönke Dornblut, 800-238-2048 (V/TTY, in state only); 603/224- 0630 (V/TTY);

Fax: 603/228-3270

Project Number: H224A10015

Start Date: September 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $506,307; FY 92 $505,008; FY 93 $550,008; FY 94 $635,000; FY 95

$635,000; FY 96 $587,813; FY 97 $625,813; FY 98 $717,815; FY 99 $538,361; FY 00 $358,908; FY

01 $358,908; FY 02 $358,908; FY 03 $358,908

Abstract: The goal of this project is to increase access to assistive technology through the creation and

support of consumer-driven systems for the provision of state-of-the-art assistive technology products

and services for citizens with disabilities in the state of New Hampshire. The project’s lead agency is

the Institute on Disability, a University Center of Excellence at the University of New Hampshire.

Additional subcontracts have been awarded to ATECH Services and Granite State Independent

Living.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-63

State Technology Assistance Projects

New Jersey

New Jersey Assistive Technology Advocacy Center (ATAC)

New Jersey Protection and Advocacy, Inc.

210 South Broad Street, Third Floor

Trenton, NJ 08608

advocate@njpanda.org

www.njpanda.org/atac

Principal Investigator: Ellen Catanese, Project Director

Public Contact: 800/342-5832 (V, in state only); 609/633-7106 (TTY); 609/292- 9742 (NJ P&A

Intake Unit); Fax: 609/777-0187

Project Number: H224A20007

Start Date: September 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $548,050; FY 93 $670,528 (includes carryover funding); FY 94 $548,050;

FY 95 $550,000; FY 96 $509,130; FY 97 $547,130; FY 98 $710,380; FY 99 $688,800; FY 00

$516,714; FY 01 $344,476; FY 02 $344,476

Abstract: ATAC is a consumer-driven program whose mission is to increase awareness of and improve access to AT for all people with disabilities in the state. The project provides information and

referral through its 800 telephone number and web site regarding all aspects of AT. ATAC also provides advocacy services, both legal and nonlegal, addressing both individual and systems issues. In

addition, project staff members provide training and technical assistance, as well as outreach regarding

the benefits of and funding for AT devices and services. ATAC disseminates brochures, funding

guides, and informational bulletins.
9-64 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

New Mexico

New Mexico Technology Assistance Program (NMTAP)

New Mexico State Department of Education

Division of Vocational Rehabilitation

435 Saint Michaels Drive, Building D

Santa Fe, NM 87505

awinnegar@state.nm.us

www.nmtap.com

Principal Investigator: Andy Winnegar, Project Director, 505/954-8521

Public Contact: Caroll Cadena, 800/866-2253 (V/TTY); 800/659-4915 (TTY); 505/954- 8533 (V/

TTY); Fax: 505/954-8562

Project Number: H224A00017

Start Date: April 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $500,500; FY 91 $515,500; FY 92 $525,000; FY 93 $660,710; FY 94

$750,000; FY 95 $750,000; FY 96 $694,000; FY 97 $732,268; FY 98 $549,201; FY 99 $366,134; FY

00 $366,134; FY 01 $366,134; FY 02 $366,134; FY 03 $366,134

Abstract: NMTAP examines and works to eliminate barriers to obtaining assistive technology in New

Mexico. The project has established a statewide program for coordinating AT services; the program is

designed to assist people with disabilities to locate, secure, and maintain AT that can increase, maintain, or improve functional capabilities of people with disabilities. This program is a resource both for

people requiring assistive technology and those that manufacture and provide AT devices or services.

The program focuses on permanently eliminating barriers in three major areas: access to, availability

of, and funding for AT with programs that include low cost financial loans and AT short-term loans to

individuals with disabilities..
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-65

State Technology Assistance Projects

New York

New York State Technology-Related Assistance of Individuals with

Disabilities (TRAID) Project

New York State Office of Advocate for Persons with Disabilities

One Empire State Plaza, Suite 1001

Albany, NY 12223-1150

traid@oapwd.org

www.advoc4disabled.state.ny.us/TRAID_Project/technlog.htm

Principal Investigator: Lisa Rosano-Kazckowski, Project Manager

Public Contact: 800/522-4369 (V/TTY/Spanish, in state only); 518/474-2825 (V); 518/473-4231

(TTY); Fax: 518/473-6005

Project Number: H224A00041

Start Date: October 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $500,000; FY 91 $600,000; FY 92 $615,000; FY 93 $820,961; FY 94

$950,000; FY 95 $950,000; FY 96 $879,406; FY 97 $917,406; FY 98 $688,054; FY 99 $458,703; FY

00 $458,703; FY 01 $458,703; FY 02 $458,703; FY 03 $458,703

Abstract: The Technology-Related Assistance of Individuals with Disabilities (TRAID) Project has

been established to improve access to AT through consumer- responsive interventions to effect systemic change on a policy, regulatory, and legislative level. Project staff members chair and facilitate the

workings of the NYS Interagency Partnership on Assistive Technology, a group designed to collaborate with a consumer-majority advisory board to identify systemic barriers to AT devices and services

and collaborate on strategies to address the barriers. In collaboration with the NYS Department of

Health, Early Intervention Program, the TRAID Project administers 12 Regional TRAID Centers

(RTCs) that operate device demonstration and loan services, coordinate local information and referral,

and support individualized self-advocacy. Through a sucontract with Cornel University’s Disability

Business Technical Assistance Center, the RTC’s also disseminate materials on accessible information

technology. The TRAID Project also provides information and referral regarding assistive technology,

provides training and public awareness, and administers the TRAID-IN Equipment Exchange service.
9-66 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

North Carolina

North Carolina Assistive Technology Project

North Carolina Department of Health and Human Services

Division of Vocational Rehabilitation Services

1110 Navaho Drive, Suite 101

Raleigh, NC 27609-7322

rhiatt@ncatp.org

www.ncatp.org

Principal Investigator: Ricki Hiatt, Project Director

Public Contact: 919/850-2787 (V/TTY); Fax: 919/850-2792

Project Number: H224A00010

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $566,425; FY 91 $595,441; FY 92 $625,843; FY 93 $730,152; FY 94

$820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $797,066; FY 98 $597,800; FY 99 $398,533; FY

00 $398,533; FY 01 $398,533; FY 02 $398,533; FY 03 $398,533

Abstract: This project provides information and referral services, technical assistance, and training

seminars and materials. It supports five regional demonstration centers that provide demonstration and

trial of devices. The project’s central office in Raleigh coordinates systems change and advocacy,

policy, and funding issues statewide. The North Carolina Division of Vocational Rehabilitation Services provides the project with internal management systems, agency resources, and fiscal management.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-67

State Technology Assistance Projects

North Carolina

Assistive Technology Act (AT Act) Technical Assistance Program (TA)-

Data Collection Program

RTI International

Center for Research in Education

3040 Cornwallis Road

P.O. Box 12194

Research Triangle Park, NC 27709-2194

cat@rti.org

Principal Investigator: Christene A. Tashjian

Public Contact: 919/541-6128; Fax: 919/541-5849

Project Number: H224B030001

Start Date: October 1, 2003

Length: 36 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 03 $427,891

Abstract: The primary purposes of this grant are to continue implementation and maintenance of the

web-based data collection system for AT Act state grantees and to develop and implement a similar

system for Protection and Advocacy (P&A) grantees. Specific project activities include: (1) maintaining and supporting the existing web- based data collection system for the AT Act state grantees; (2)

developing an annual program performance reporting form for P&A grantees in collaboration with

NIDRR and a work group of stakeholders; (3) developing, implementing, and maintaining a webbased data collection system for the P&As based on the new form; (4) training grantees in the use of

the data collection instruments and systems; (5) writing analytical reports based on the data collected

from the grantees and writing an annual report on grantees’ performance and outcomes, including

interpretations of findings; (6) identifying and evaluating successful strategies that can be linked to

increased access to and provision of AT based on the data collected from the grantees, including

analyses of use of AT by individuals with disabilities and national trends related to AT use by individuals with disabilities; (7) examining the extent to which the grantee data address the intended purposes

of the data collection activities; and (8) disseminating the reports generated from grant activities to the

primary stakeholders of the AT Act grant program and other relevant groups. This project is a collaboration of RTI, Neighborhood Legal Services, and InfoUse.
9-68 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

North Dakota

North Dakota Interagency Program for Assistive Technology (IPAT)

North Dakota Department of Human Services

Office of Vocational Rehabilitation

P.O. Box 743

Cavalier, ND 58220

jlee@polarcomm.com

www.ndipat.org

Principal Investigator: Judith A. Lee, Project Director

Public Contact: 800/265-4728 (V/TTY); 701/239-7247 (V/TTY); Fax: 701/239-7229

Project Number: H224A30003

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $500,000; FY 94 $540,000; FY 95 $540,000; FY 96 $509,130; FY 97

$547,130; FY 98 $633,103; FY 99 $611,000; FY 00 $611,000; FY 01 $458,756; FY 02 $305,500; FY

03 $305,500

Abstract: The Interagency Program for Assistive Technology is dedicated to supporting the AT needs

of all people with disabilities in North Dakota, including those individuals experiencing the effects of

aging. The vision of this project is increased access to AT devices and services for the citizens of North

Dakota. This goal is realized through: (1) interagency coordination that develops and promotes policies

that improve access to AT devices and services for individuals with disabilities of all ages; (2) a public

awareness program designed to provide information to targeted individuals relating to the availability

and benefits of AT devices and services; (3) technical assistance and training that provides support to

public and private entities to increase consumer access to appropriate assessments, training, equipment,

and funding for AT; and (4) outreach activities to all regions of this rural and sparsely populated state,

including a focus on Native Americans and older individuals living below the poverty level, the two

population groups identified as underrepresented in North Dakota.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-69

State Technology Assistance Projects

Northern Mariana Islands

Commonwealth of the Northern Mariana Islands (CNMI) Assistive

Technology Project: System of Technology-Related Assistance for

Individuals with Disabilities (STRAID)

CNMI Governor’s Council on Developmental Disabilities

Capitol Hill

P.O. Box 502565

Saipan, MP 96950-2565

clamkin@cnmiddcouncil.org; straid@cnmiddcouncil.org

www.cnmiddcouncil.org/atstraid/atflash.htm

Principal Investigator: Thomas J. Camacho, Project Director

Public Contact: Project Coordinator, 670/664-7000 (V); Fax: 670/664-7010

Project Number: H224A40007

Start Date: October 1, 1994

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 94 $150,000; FY 95 $150,000; FY 96 $150,000; FY 97 $150,000; FY 98

$150,000; FY 99 $105,000; FY 00 $105,000; FY 01 $105,000; FY 02 $105,000; FY 03 $105,000

Abstract: This project provides technology-related assistance for people with disabilities in the Commonwealth of the Northern Mariana Islands. The project focuses on the development of a locally based

system for the technology-related needs of children, youth, and adults with disabilities. The primary

objective of this project is to enhance opportunities for people with disabilities in the Commonwealth

to become independent, productive, integrated, and fully included in the community. Through increased emphasis on coordination with agencies or organizations that provide or pay for the provision

of AT devices or services, the CNMI Council on Developmental Disabilities is building and activating

a system that responds to the needs of people with disabilities to: (1) have greater control over their

lives; (2) participate in, and contribute more fully to, activities in their home, school, work environment, and community; (3) interact to a greater extent with individuals who do not have disabilities; and

(4) benefit from opportunities that are taken for granted by individuals who do not have disabilities.
9-70 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Ohio

Assistive Technology of Ohio (AT OHIO)

Ohio State University Research Foundation

J.L. Camera Center

2050 Kenny Road, 9th Floor

Columbus, OH 43221

atohio@osu.edu

www.atohio.org

Principal Investigator: Sheldon R. Simon, MD

Public Contact: Douglas Huntt, Executive Director, 800/784-3425 (V/TTY, in state only); 614/292-

2426 (V/TTY); 614/292-3162 (TTY); Fax: 614/292-5866

Project Number: H224A40001

Start Date: August 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $522,100; FY 93 $522,000; FY 94 $770,113; FY 95 $600,000; FY 96

$555,414; FY 97 $593,414; FY 98 $815,688; FY 99 $794,260; FY 00 $595,695; FY 01 $397,130; FY

02 $397,130; FY 03 $397,130

Abstract: This project administers, and advocates for, programs that promote increased availability

and affordability of assistive technology for Ohioans with disabilities. Staff members work to accomplish an increased level of education among people with disabilities and the professionals that provide

services to them regarding the role that technology can play in the lives of people with disabilities. The

project educates the public at large about how technology can be the bridge to independence for

people with disabilities in the areas of employment, education, and everyday living. A project goal is to

improve the services provided to people with disabilities by state, locals and county governments,

service agencies, and public libraries. This project is a resource for people with disabilities to learn

about assistive technology and how it can help them overcome barriers in their lives. Project initiatives

include adaptive toy lending libraries for families of children with disabilities, low interest loans for

technology to people with disabilities, and a computer refurbishing and recycling program.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-71

State Technology Assistance Projects

Oklahoma

Oklahoma ABLE Tech

Oklahoma State University

Seretean Wellness Center

1514 West Hall of Fame

Stillwater, OK 74078-2026

mljwell@okstate.edu

okabletech.okstate.edu

Principal Investigator: Mac McCrory, Project Director

Public Contact: Linda Jaco, Project Manager, 800/257-1705 (V/TTY); 405/744-9864 (V); Fax: 405/

744-2487

Project Number: H224A50007

Start Date: July 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $530,000; FY 93 $668,524 (includes carryover funding); FY 94 $530,000;

FY 95 $575,000; FY 96 $532,272; FY 97 $570,272; FY 98 $695,237; FY 99 $673,809; FY 00

$505,357; FY 01 $336,905; FY 02 $336,905; FY 03 $336,905

Other funding: FY 92 $85,000 (Oklahoma Department of Rehabilitation Services); $64,944 (US

Department of Agriculture); FY 00 $33,000 (Southwest Center for Agricultural Health, Injury Prevention and Education-NIOSH); FY 01 $100,000 (Oklahoma Department of Rehabilitation Services)

Abstract: The purpose of Oklahoma ABLE Tech is to increase access to assistive technology for

people of all ages and all disabilitites through a variety of consumer- responsive systems change

activities. ABLE Tech provides information, referral, training, technical assistance, and advocacy, and

works to improve laws and policies providing access to assistive technology.
9-72 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Oregon

Oregon Technology Access for Life Needs (TALN)

Oregon Disabilities Commission

c/o Access Technologies, Inc.

3070 Lancaster Drive Northeast

Salem, OR 97305-1396

ati@oregonuos.net

www.taln.org

Principal Investigator: Laurie Brooks, Project Director

Public Contact: 800/677-7512 (V/TTY, in state only); 503/361-1201 (V/TTY); Fax: 503/370-4530

Project Number: H224A50002

Start Date: April 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $540,000; FY 91 $555,000; FY 92 $575,000; FY 93 $620,000; FY 94

$670,000; FY 95 $670,000; FY 96 $620,212; FY 97 $658,212; FY 98 $493,659; FY 99 $329,106; FY

00 $329,106; FY 01 $329,106; FY 02 $329,106

Abstract: This project uses existing resources including community colleges, medical, rehabilitation,

educational, and recreational and adaptive sports programs, the state library system, federally funded

technology projects currently in existence in Oregon, and state agencies to expand the availability of

AT in Oregon. Projects include an exhibit to increase public awareness, a toll-free number for information and referral, training programs, equipment loan banks and demonstration labs, and a database on

used equipment.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-73

State Technology Assistance Projects

Pennsylvania

Pennsylvania’s Initiative on Assistive Technology (PIAT)

Temple University

Institute on Disabilities/UCDD

1301 Cecil B. Moore Avenue, 423 Ritter Annex

Philadelphia, PA 19122

piat@temple.edu

disabilities.temple.edu

Principal Investigator: Diane Nelson Bryen, PhD; Amy S. Goldman, 215/204-1356

Public Contact: Amy S. Goldman, 800/204-7428 (V) in state only; 215/204-5966 (V); 215/204-1356

(V/TTY); Fax: 215/204-9371

Project Number: H224A20006

Start Date: September 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $550,000; FY 93 $602,623; FY 94 $730,000; FY 95 $850,000; FY 96

$786,837; FY 97 $824,837; FY 98 $1,049,575; FY 99 $1,028,147; FY 00 $771,110; FY 01 $514,074;

FY 02 $514,074; FY 03 $514,074

Abstract: This project focuses on the creation of a consumer responsive system, supported by combined public and private resources, through which Pennsylvanians with disabilities (including older

Pennsylvanians) have access to the AT services and supports they need to contribute to and participate

fully in their communities. Major functional areas include public awareness, information and referral,

individual advocacy and systems change, and training. PIAT has established a network of regional

Assistive Technology Resource Centers (ATRCs). ATRCs are also a key to Pennsylvania’s Assistive

Technology Lending Library, a state funded program based on the pilot short-term equipment loan

program developed by PIAT.
9-74 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Puerto Rico

Puerto Rico Assistive Technology Project

FILIUS Institute

University of Puerto Rico

Jardin Botanico Sur 1187 Calle Flambyan

San Juan, PR 00926-117

pratp@pratp.urp.edu

www.pratp.urp.edu

Principal Investigator: Maria I. Miranda

Public Contact: 800/496-6035 (V/TTY, from the U.S.); 800/981-6033 (V/TTY, from Puerto Rico);

787/767-6035 (V); 787/764-6062 (V); 787/767-8642 (TTY); Fax: 787/754-8034

Project Number: H224A70001

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $500,000; FY 94 $545,000; FY 95 $555,000; FY 96 $513,758; FY 97

$551,758; FY 98 $692,202; FY 99 $670,774; FY 00 $670,774; FY 01 $503,081; FY 02 $335,387

Abstract: This project establishes a comprehensive, island-wide system of AT services to maximize

and enhance existing resources in Puerto Rico. This system is timely and consumer-responsive to the

needs of people with disabilities. The project’s main focus is to influence the system through collaborative efforts with public and private agencies to guarantee equal opportunity and access to AT by people

with disabilities in Puerto Rico. The Assistive Technology Program is administered by the University

of Puerto Rico, Office of the President, FILIUS Institute, Assistive Technology Institute.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-75

State Technology Assistance Projects

Rhode Island

Rhode Island Assistive Technology Access Partnership (ATAP)

Rhode Island Department of Human Services

Office of Rehabilitation Services

40 Fountain Street

Providence, RI 02903-1898

reginac@ors.state.ri.us

www.atap.state.ri.us

Principal Investigator: Raymond A. Carroll, Administrator

Public Contact: Regina Connor, Project Director, 800/752-8088 (in state only); 401/421-7005, ext.

390 (V); 401/421-7016 (TTY); Fax: 401/222-3574

Project Number: H224A30012

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $500,000; FY 94 $500,000; FY 95 $500,000; FY 96 $500,000; FY 97

$538,000; FY 98 $624,467; FY 99 $603,039; FY 00 $603,039; FY 01 $452,279; FY 02 $301,520; FY

03 $301,520

Abstract: The Rhode Island Assistive Technology Access Partnership (ATAP) is a statewide partnership of organizations, each with a targeted focus, working together with a consumer council (Rhode

Island Council on Assistive Technology) to remove barriers and increase access to AT for individuals

with disabilities of all ages.
9-76 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

South Carolina

South Carolina Assistive Technology Program (SCATP)

University of South Carolina School of Medicine

Center for Disability Resources

Columbia, SC 29208

jjendron@usit.net; evelyne@cdd.sc.edu

www.sc.edu/scatp

Principal Investigator: Richard Ferrante, 803/935-5231 (V)

Public Contact: Evelyn Evans, Project Director, 803/935-5340 (V/TTY); Fax: 803/935-5342

Project Number: H224A60001

Start Date: October 1, 1991

NIDRR Officer: Carol Cohen/Judy Fein

NIDRR Funding: FY 91 $541,767; FY 92 $541,767; FY 93 $595,767; FY 94 $720,000; FY 95

$720,000; FY 96 $667,000; FY 97 $704,497; FY 98 $829,535; FY 99 $622,151; FY 00 $414,768; FY

01 $414,768; FY 02 $414,768; FY 03 $414,768

Abstract: This project is the catalyst for uniting AT services statewide into an easily accessible system

that is responsive to the needs of all South Carolinians with disabilities. SCATP collaborates with state

agencies, policy-makers, and private entities to overcome barriers that prevent people from getting the

devices and services they need for full and productive lives. Systems change activities are connected to

training and technical assistance activities that are supportive of system change. All activities are

guided by input from and responsiveness to consumers and their families.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-77

State Technology Assistance Projects

South Dakota

South Dakota Assistive Technology Project (DakotaLink)

DakotaLink

1925 Plaza Boulevard

Rapid City, SD 57702

dvogel@tie.net

dakotalink.tie.net

Principal Investigator: Grady Kickul, 605/773-3195 (V)

Public Contact: Dave Vogel, 800/224-5336 (V/TTY, in state only); 605/224-5336 (V/TTY); Fax:

605/224-8320

Project Number: H224A20019

Start Date: July 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $520,000; FY 93 $520,000; FY 94 $620,000; FY 95 $650,000; FY 96

$601,699; FY 97 $601,699; FY 98 $728,100; FY 99 $700,000; FY 00 $525,000; FY 01 $353,336; FY

02 $353,336; FY 03 $353,336

Abstract: To achieve systems change, DakotaLink works with consumers, state and private agencies,

and organizations providing services to, or advocating for, people with disabilities to identify and

eliminate barriers to individuals receiving AT devices or services in a timely manner. The project uses

demonstration centers, outreach coordinators, rehabilitation technicians, and training programs as a

catalyst to: (1) reach the most underserved areas; (2) provide advocacy training for people with disabilities and their representatives; and (3) provide information support to all individuals regarding

access to, provision of, and funding for assistive technology devices and services. DakotaLink continues to use a Native American Outreach Coordinator to reach specifically that underserved population.
9-78 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Tennessee

Tennessee Technology Access Project (TTAP)

TTAP

Tennessee Department of Human Services

Department of Rehabilitation Services

Citizen’s Plaza, 11th Floor

400 Deadrick Street

Nashville, TN 37248

tn.ttap@state.tn.us

www.state.tn.us/humanserv/ttap_index.htm

Principal Investigator: Kevin R. Wright, Project Director

Public Contact: 800/732-5059; 615/532-3122 (V/TTY); Fax: 615/532-4685

Project Number: H224A010002

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $550,000; FY 91 $553,675; FY 92 $553,675; FY 93 $640,800; FY 94

$665,000; FY 95 $665,000; FY 96 $615,584; FY 97 $653,584; FY 01 $326,792; FY 02 $326,792; FY

03 $326,792

Abstract: This project’s mission is to maintain a statewide program of technology-related assistance

that is timely, comprehensive, and consumer-driven to ensure that all Tennesseans with disabilities

have the information, services, and devices they need to make choices about where and how they

spend their time as independently as possible. TTAP and its five regional assistive technology centers,

located in Jackson, Knoxville, Chattanooga, Memphis, and Nashville, work daily toward that mission

by providing public awareness, evaluation, minority outreach, and advocacy services to individuals,

families, businesses, and government.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-79

State Technology Assistance Projects

Texas

Texas Technology Access Project

University of Texas at Austin

Texas Center for Disability Studies

4030 West Braker Lane

Building 1, Suite 180

Austin, TX 78759

johnz@utxvms.cc.utexas.edu

techaccess.edb.utexas.edu

Principal Investigator: Susanne Elrod, Project Director

Public Contact: John Moore, 800/828-7839 (V/TTY, in state only); 512/471-7621 (V); 512/471-1844

(TTY); Fax: 512/471-7549

Project Number: H224A20012

Start Date: August 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $550,000; FY 93 $550,000; FY 94 $550,000; FY 95 $850,000; FY 96

$786,837; FY 97 $824,837; FY 98 $1,167,518; FY 99 $1,146,080; FY 00 $859,566; FY 01 $573,044;

FY 02 $573,044; FY 03 $573,044

Abstract: This project promotes increased access to assistive and telecommunication technology

through technical assistance and training, information and public awareness activities, and coordination

with public agencies and policy makers.
9-80 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

U.S. Virgin Islands

U.S. Virgin Islands Technology-Related Assistance for Individuals with

Disabilities (TRAID)

University of the Virgin Islands

Virgin Islands Center for Excellence in Developmental Disabilities

2 John Brewers Bay

St. Thomas, USVI 00801-0990

sgrant@uvi.edu; wevans@uvi.edu

www.uvi.edu/pub-relations/resource.htm

Principal Investigator: Yegin Habtes, 340/693-1323

Public Contact: Charlene Grant; Wanda Evans, 340/693-1188 (Grant); 340/692-1919 (Evans); Fax:

340/693-1325

Project Number: H224A50005

Start Date: October 1, 1995

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 95 $150,000; FY 96 $150,000; FY 97 $150,000; FY 98 $150,000; FY 99

$105,000; FY 00 $105,000; FY 01 $105,000; FY 02 $105,000; FY 03 $105,000

Other funding: FY 95 $6,400

Abstract: The Virgin Islands project disseminates necessary information on assistive technologies for

people with disabilities and provides a venue for device demonstration through the establishment of

two resource centers, on the islands of St. Thomas and St. Croix. The project is also initiating an AT

loan library.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-81

State Technology Assistance Projects

Utah

Utah Assistive Technology Program (UATP)

Utah State University

Center for Persons with Disabilities

6855 Old Main Hill

Logan, UT 84322-6855

uatp@cc.usu.edu

www.uatpat.org

Principal Investigator: Martin E. Blair, Program Director, 435/797-3886

Public Contact: 435/797-3824 (V); Fax: 435/797-2355

Project Number: H224A90051

Start Date: November 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $505,445; FY 90 $507,720; FY 91 $559,720; FY 92 $696,224; FY 93

$788,526; FY 94 $800,000; FY 95 $800,000; FY 96 $740,560; FY 97 $555,414; FY 98 $370,276; FY

99 $370,276; FY 00 $370,276; FY 01 $370,276; FY 02 $370,276; FY 03 $370,276

Abstract: The Utah Assistive Technology Program (UATP) provides expertise, resources, and a

structure to enhance and expand AT services provided by private and public agencies in Utah. This

occurs through professional training, device demonstration, policy monitoring and development,

interagency coordination, information dissemination, the identification and removal of barriers with

consumer groups, and expanding state resources. Primary components of UATP include: (1) the Utah

Center for Assistive Technology, a statewide service hub; (2) Assistive Technology Access Centers

located in rural centers for independent living; (3) outreach to underrepresented populations with

specific emphasis on those of Hispanic and Native Amerian descent; (4) the Utah Assistive Technology Foundation providing zero-interest loans to consumers; (5) the Assistive Technology Council,

made up of state service agency representatives (usually the directors) and consumers that take appropriate action to remove barriers; and (6) consumer technical services and training provided by the

Assistive Technology Development and Fabrication Laboratory at Utah State University. UATP is

currently directing initiatives to: (a) expand the Utah Relay System and telephone equipment distribution system; (b) ensure accessible elections (both physical and procedural access); (c) improve access

of One Stop Centers (both facility and program access); and, (d) develop and provide ongoing, competency-based training to service providers and families in the early intervention and adult services

systems.
9-82 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Vermont

Vermont Assistive Technology Project

Vermont Department of Aging and Disabilities

103 South Main Street, Weeks Building

Waterbury, VT 05671-2305

betsyr@dad.state.vt.us

www.dad.state.vt.us/atp

Principal Investigator: Julie Tucker, Project Director

Public Contact: 800/750-6355 (V/TTY, in state only); 802/241-2620 (V/TTY); Fax: 802/241-2174

Project Number: H224A00023

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $553,048; FY 91 $560,577; FY 92 $581,417; FY 93 $705,000; FY 94

$700,000; FY 95 $700,000; FY 96 $647,983; FY 97 $685,983; FY 98 $514,487; FY 99 $342,991; FY

00 $342,992; FY 01 $342,992; FY 02 $342,992; FY 03 $342,992

Other funding: FY 03 $92,000 (Medicaid Infrastructure Grant)

Abstract: The Vermont Assistive Technology Project has regional centers for demonstration, trial, and

technical support for all types of assistive technology, including computer and augmentative communication equipment, as well as information and referral. The project affects change in policies and procedures of public and private agencies by providing AT expertise on boards and committees such as the

Developmental Services Communication Task Force, ADA Coalition, Telephone Equipment Distribution Program, etc. The Project advocates for visitable homes by educating consumers about Vermont’s

housing accessibility laws, which the Project was instrumental in passing. The Project supports an

annual AT institute for educators and presents many workshops in settings such as the Traumatic Brain

Injury Conference to raise awareness and institute AT knowledge and expertise into existing public

and private agencies. The Project also supports an AT Equipment Revolving Loan Fund Program

through a community credit union.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-83

State Technology Assistance Projects

Virginia

Virginia Assistive Technology System (VATS)

Virginia Department of Rehabilitative Services (DRS)

8004 Franklin Farms Drive

P.O. Box K-300

Richmond, VA 23288-0300

knorrkh@drs.state.va.us

www.vats.org

Principal Investigator: Kenneth Knorr, Project Director

Public Contact: 800/552-5019 (V/TTY); 804/662-9990 (V/TTY); Fax: 804/662-9478

Project Number: H224A00009

Start Date: June 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $550,000; FY 91 $562,500; FY 92 $578,883; FY 93 $685,331; FY 94

$663,467; FY 95 $745,000; FY 96 $689,639; FY 97 $727,639; FY 98 $545,729; FY 99 $363,820; FY

00 $363,820; FY 01 $363,820; FY 02 $363,820; FY 03 $363,820

Abstract: The Virginia Assistive Technology System (VATS) provides coordination at two levels:

state policy, through the mechanism of interagency agreements and project management; and at the

local and regional level, through three AT regional sites. Activities include information and referral

services, technical assistance, training materials and seminars, and policy development. The project has

produced a textbook, Assistive Technology: A Resource for School, Work, and Community (Brookes

Publishing) and a National Study of Loan Financing Programs. This project participates in the Mid

Atlantic DBTACs Accessible Information Technology in Education program.
9-84 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Washington

Washington Assistive Technology Alliance (WATA)

University of Washington

Center for Technology and Disability Studies (CTDS)

Box 357920

Seattle, WA 98195-7920

uwat@u.washington.edu

wata.org

Principal Investigator: Kurt Johnson, PhD, 206/685-4181

Public Contact: Debbie Cook, Project Director, 800/841-8345 (V/TTY, in state only); 206/685-4181

(V); 206/616-1396 (TTY); Fax: 206/543-4779

Project Number: H224A020001

Start Date: October 1, 2002

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 02 $308,072; FY 03 $359,105

Abstract: WATA promotes the use of assistive technology devices and services for people with

disabilities, their families, caregivers, employers, teachers, and health care and social service providers

in Washington State. Activities for this project include information, consultation, and training related to

selection of technology devices, services, and funding; legal advice and advocacy; policy development; legislative action; technical consultation and training; publications; and online resources. WATA

is a consumer advocacy network that includes the University of Washington Center for Technology

and Disability Studies, and the AT Resource Center at Easter Seal Society in Spokane. The project is

administered by the University to Washington with guidance from the Consumer Majority Advisory

Board.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-85

State Technology Assistance Projects

West Virginia

West Virginia Assistive Technology System (WVATS)

West Virginia University Center for Excellence in Disabilities

Airport Research and Office Park

955 Hartman Run Road

Morgantown, WV 26505

jcstewart@hsc.wvu.edu

TBA

Principal Investigator: Janice A. Holland, 304/766-4694 (V)

Public Contact: Jack Stewart, Project Manager, 800/841-8436 (V/TTY, in state only); 304/293-4692

(V/TTY); Fax: 304/293-7294

Project Number: H224A20011

Start Date: July 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $530,000; FY 93 $530,000; FY 94 $620,000; FY 95 $620,000; FY 96

$573,928; FY 97 $611,928; FY 98 $716,068; FY 99 $716,068; FY 00 $520,980; FY 01 $347,320; FY

02 $347,320; FY 03 $347,320

Abstract: The WVATS project seeks to improve the availability of AT by improving existing AT

services, facilitating coordination of AT service-delivery programs, identifying and remediating gaps in

services, and promoting, developing, and/or delivering new services. These systemic changes are

carried out in response to and consonant with consumer advice, direction, and consent. The West

Virginia project has a board composed primarily of consumers and their families. State organizations

and agencies provide guidance, structure, and input. WVATS uses a “core” system directed by a board,

overseen by the Division of Rehabilitation Services, and managed on a day-to- day basis by the Center

for Excellence in Disability at West Virginia University. WVATS supports program staff, an information and referral system with a toll-free number, two resource centers, a statewide awareness campaign,

training programs, and seven regional technology-related assistance teams.
9-86 NIDRR Program Directory FY 2003 - State Technology Assistance Projects

State Technology Assistance Projects

Wisconsin

WisTech

Wisconsin Assistive Technology Program

Division of Supportive Living

1 West Wilson Street, Room 450

P.O. Box 7851

Madison, WI 53707-7851

abbeysu@dhfs.state.wi.us

www.wistech.state.wi.us

Principal Investigator: Susan Abbey, Project Director, 608/266-1794

Public Contact: 608/266-0421 (V/TTY) (until 2/27/2004); 608/266-8905 (V/TTY) (after 2/27/2004);

608/267-9880 (TTY); Fax: 608/267-3203

Project Number: H224A00013

Start Date: May 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $572,871; FY 91 $575,000; FY 92 $590,313; FY 93 $685,488; FY 94

$730,000; FY 95 $730,000; FY 96 $675,754; FY 97 $713,754; FY 98 $535,315; FY 99 $356,877; FY

00 $356,877; FY 01 $356,877; FY 02 $356,877; FY 03 $356,877

Abstract: WisTech provides direct consumer services by contracting with eight Wisconsin Centers for

Independent Living, the Wisconsin Coalition for Advocacy (a Protection and Advocacy agency), and

AgrAbility. Consumer-direct services include AT assessments, maintenance of equipment loan closets,

assistance with locating funding for AT, among other services. WisTech incorporations consumer

control and involvement by working with the WisTech Advisory Board, comprised of at least 51

percent consumers or parents, and service providers.
NIDRR Program Directory FY 2003 - State Technology Assistance Projects 9-87

State Technology Assistance Projects

Wyoming

Wyoming’s New Options in Technology (WYNOT)

University of Wyoming

Wyoming Institute for Disabilities (WIND)

University of Wyoming

Laramie, WY 82071-4298

wynot.uw@uwyo.edu

wind.uwyo.edu/wynot

Principal Investigator: Keith Miller, PhD, 307/766-2761 (V)

Public Contact: 800/861-4312 (V/TTY, in state only); 307/766-2051 (V/TTY); Fax: 307/721-2084

Project Number: H224A60002

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 94 $500,000; FY 95 $500,000; FY 96 $500,000; FY 97 $500,000; FY 98

$620,502; FY 99 $599,074; FY 00 $599,074; FY 01 $449,306; FY 02 $336,979; FY 03 $299,537

Abstract: The mission of WYNOT is to build statewide capacity for universal access to assistive

technology for all of Wyoming and to establish a self-sustaining system that will continue to meet the

state’s need for assistive technology after Federal funding for WYNOT has ended. In pursuing this

mission, WYNOT provides training and technical assistance to statewide and community-based

organizations to enhance their capacity to meet the assistive technology needs of individuals with

disabilities. WYNOT also provides technical assistance and training for consumers. The project

operates a demonstration center, loan bank, information and referral service, and outreach services.
Subject Index

No subject index was created for this version of the NIDRR Program Directory. The Directory remains in database format at www.naric.com/search/pd. This format is considerably more effective for

subject-oriented organization of the material in the Directory.

For assistance in searching the Program Directory database, contact the staff at NARIC at 800/346-

2742 or email jchaiken@heitechservices.com
Grantees

Grantees B-3

AbleLink Technologies, Inc. ED-01-PO-3664 Colorado Springs, CO 4-44

AbleLink Technologies, Inc. ED-01-PO-3664 Colorado Springs, CO 4-48

AbleLink Technologies, Inc. ED-01-PO-3665 Colorado Springs, CO 4-45

AbleLink Technologies, Inc. ED-01-PO-3665 Colorado Springs, CO 4-53

AbleLink Technologies, Inc. H133S030045 Colorado Springs, CO 3-73

AbleLink Technologies, Inc. H133S030127 Colorado Springs, CO 3-74

Adaptive Environments Center, Inc. H133D010211 Boston, MA 7-1

Alabama Department of Rehabilitation

Services H224A30009 Montgomery, AL 9-29

Alaska Department of Labor and

Workforce Development H224A990001 Anchorage, AK 9-30

Albert Einstein Healthcare Network H133A020505 Philadelphia, PA 2-53

Albert Einstein Healthcare Network H133G030169 Philadelphia, PA 2-91

Alfred I. duPont Hospital for Children H133G010041 Wilmington, DE 2-66

Alfred I. duPont Institute of the

Nemours Foundation H133G000117 Wilmington, DE 3-49

Amazability, Inc. H133S030005 Waban, MA 3-87

American Foundation for the Blind H133G010183 New York, NY 4-33

AnthroTronix, Inc. H133S030037 Silver Spring, MD 3-86

Applied Human Factors, Inc. H133S030189 Helotes, TX 4-47

Arizona University Center on

Disabilities H133B980049 Flagstaff, AZ 5-1

Arkansas Rehabilitation Services H224A90020 Little Rock, AR 9-33

Arlyn Toolworks H133S020121 Carlisle, PA 3-81

ATRC H224A10023 Honolulu, HI 9-42

ATTAIN, Inc. H224A00027 Indianapolis, IN 9-45

Automated Functions, Inc. H133S030012 Falls Church, VA 3- 95

Automatic Sync Technologies H133S030048 Hayward, CA 3-71

AVP/CEDDARS/GSAT H224A40003 Mangilao, GU 9-41

Baltimore Regional Burn Center H133A020101 Baltimore, MD 2-21

Bart Kylstra H133S030134 San Francisco, CA 3-72

Baylor College of Medicine H133A980073 Houston, TX 2-18

Baylor College of Medicine H133G000226 Houston, TX 2-95

Baylor College of Medicine H133G030170 Houston, TX 4-42

Baylor College of Medicine H133P020003 Houston, TX 8-30

Beth Israel Medical Center H133G000120 New York, NY 2-86

Blue Sky Designs, Inc. H133S030118 St. Paul, MN 3-78

Boston University H133B990005 Boston, MA 5-5

Boston University H133B990023 Boston, MA 4-6

Boston University H133G010113 Boston, MA 1-17

Boston University H133G020181 Boston, MA 5-12

Boston University H133G030190 Boston, MA 1-19

Boston University H133P020011 Boston, MA 8-26

Boston University H133P990003 Boston, MA 8-24

Boston University H133P990004 Boston, MA 8-25

Boston University Medical Center

Hospital H133N000024 Boston, MA 2-31
B-4 Grantees

Brain Injury Association of

America, Inc. H133G020215 McLean, VA 1-24

Brown University H133G010094 Providence, RI 2-92

California Department of Rehabilitation H224A30008 Sacramento, CA 9-34

California Foundation for Independent

Living Centers (CFILC) H133A010702 Sacramento, CA 3-32

Case Western Reserve University H133G020029 Cleveland, OH 2-88

Center for an Accessible Society

Exploding Myths, Inc. H133A980045 San Diego, CA 6-4

Center for Applied Science and

 Engineering H133G990115 Wilmington, DE 3-48

Center for Applied Science and

Engineering H224A10005 Wilmington, DE 9-37

Center for Career and Community

Research H133S030132 St. Paul, MN 1-27

Center for International Rehabilitation H133E030017 Chicago, IL 3-16

Center for International Rehabilitation H133E980031 Chicago, IL 3-12

CESSI ED-00-CO-0079 McLean, VA 8-33

CESSI ED-02-CO-0008 McLean, VA 7-11

CESSI H133G020116 McLean, VA 1-23

Charlotte Mecklenburg Hospital

 Authority H133A020522 Charlotte, NC 2-50

Chemica Technologies, Incorporated H133S030019 Bend, OR 2-101

Children’s Hospital H224A00036 Boston, MA 9-52

Children’s Hospital Medical Center H133G000134 Cincinnati, OH 4-35

CNMI Governor’s Council on

Developmental Disabilities H224A40007 Saipan, MP 9-67

CNMI Governor’s Council on

Developmental Disabilities H224C030031 Saipan, MP 9-17

Commonwealth of Pennsylvania H224C030013 Harrisburg, PA 9-19

Connecticut Department of Social

Services H224A20013 Hartford, CT 9-36

Conwal, Inc. ED-98-CO-0004 McLean, VA 8-32

Cornell University H133B031111 Ithaca, NY 5-6

Cornell University H133B980038 Ithaca, NY 1-7

Cornell University H133D010205 Ithaca, NY 7-2

Cornell University H133G020117 Ithaca, NY 5-14

Craig Hospital H133A011108 Englewood, CO 2-14

Craig Hospital H133A020510 Englewood, CO 2-43

Craig Hospital H133G020182 Englewood, CO 2-65

Craig Hospital H133N000001 Englewood, CO 2-28

DakotaLink H224A20019 Rapid City, SD 9-75

Dancing Dots Braille Music

Technologies, LP H133S030040 Valley Forge, PA 3-93

Dartmouth College H133G000136 Lebanon, NH 2-84

Data Harbor H133S030210 Chicago, IL 4-46
Grantees B-5

Department of Career Development/

Rehabilitation Services H224C030022 Lansing, MI 9-12

DePaul University H133G030165 Chicago, IL 1-16

Dept. of Human Resources H224A00037 Carson City, NV 9-59

Division of Vocational Rehabilitation H224A30014 Pago Pago, American Samoa 9-31

Duke University H133A010401 Durham, NC 3-37

Duke University H133E030018 Durham, NC 3-22

Duke University H133E980026 Durham, NC 3-21

Education Development Center, Inc. H133G000204 Newton, MA 3-59

Elana E. Rock, EdD H133F030041 Baltimore, MD 8-7

EM Photonics Incorporated H133S030163 Newark, DE 2-100

Eugene Research Institute H133G010162 Eugene, OR 3-64

FAAST, Inc. H224A000001 Tallahassee, FL 9-39

FILIUS Institute H224A70001 San Juan, PR 9-72

Florida Department of Education:

Division of Vocational Rehabilitation H224C030018 Tallahassee, FL 9-3

Gallaudet University H133E010107 Washington, DC 3-4

Gallaudet University H133E030006 Washington, DC 3-6

Georgetown University H133B001200 Washington, DC 2-5

Georgia Centers for Advanced

Telecommunications Technology

(GCATT) H133E010804 Atlanta, GA 3-8

Georgia Department of Labor H224A10001 Atlanta, GA 9-40

Georgia Department of Labor H224C030009 Atlanta, GA 9-4

Georgia Institute of Technology H133A000405 Atlanta, GA 3-33

Georgia Institute of Technology

Center for Assistive Technology &

Environmental Access H133E020720 Atlanta, GA 3-9

Georgia Institute of Technology H133E030035 Atlanta, GA 3-10

Georgia Institute of Technology H133G020240 Atlanta, GA 2-67

Georgia Institute of Technology H224B020002 Atlanta, GA 6-16

Georgia Tech Research Corporation H133D010207 Atlanta, GA 7-4

Heidi Silver-Pacuilla H133F020025 Tucson, AZ 8-11

HeiTech Services, Inc. ED-02-CO-0002 Lanham, MD 6-18

Henter Math, LLC H133S030198 St. Petersburg, FL 3-75

Howard University H133A990020 Washington, DC 4-13

Howard University H133B000903 Washington, DC 2-6

IATP H224A90038 Springfield, IL 9-44

Illinois Department of Human Services H224C030026 Springfield, IL 9-6

Indiana University H133G030106 Indianapolis, IN 4-24

Inland Northwest Health Service H133G020006 Spokane, WA 4-43

Institute for Community Inclusion H133B980037 Boston, MA 1-4

Institute for Disabilities Research and

Training H133S030009 Silver Spring, MD 3-85

The Institute for Rehabilitation and

Research (TIRR) H133A011501 Houston, TX 6-12
B-6 Grantees

The Institute for Rehabilitation and

Research (TIRR) H133B031117 Houston, TX 4-12

The Institute for Rehabilitation and

Research (TIRR) H133B990014 Houston, TX 2-12

The Institute for Rehabilitation and

Research (TIRR) H133D010210 Houston, TX 7-6

The Institute for Rehabilitation and

Research (TIRR) H133G010152 Houston, TX 2-96

The Institute for Rehabilitation and

Research (TIRR) H133G030144 Houston, TX 2-97

The Institute for Rehabilitation and

Research (TIRR) H133N000004 Houston, TX 2-38

Intelligent Automation, Inc. H133S030095 Rockville, MD 3- 76

InvoTek, Inc. H133S020106 Alma, AR 3-70

InvoTek, Inc. H133S030165 Alma, AR 3-84

Iowa Department for the Blind H133A010104 Des Moines, IA 1-10

Iowa Finance Authority H224C030005 Des Moines, IA 9-7

Iowa University Center for Excellence

in Disabilities H224A00028 Iowa City, IA 9-46

James Herbert, PhD H133F020007 University Park, PA 8-10

Jennifer A. Stevens, PhD H133F030015 Chicago, IL 8-12

JFK Johnson Rehabilitation Institute H133A020518 Edison, NJ 2-48

JFK Johnson Rehabilitation Institute H133A031713 Edison, NJ 2-18

Joanne Valvano, PhD H133F030020 Colorado Springs, CO 8-17

Jodi L. Saunders, PhD H133F030016 Iowa City, IA 8-14

Joseph W. Madaus, PhD H133F030022 Storrs, CT 8-6

KATS Network Coordinating Center H224A90002 Louisville, KY 9-48

Kentucky Department of Vocational

Rehabilitation H224C030029 Frankfort, KY 9-9

Kessler Medical Rehabilitation Research

and Education Corporation (KMRREC)H133A011403 West Orange, NJ 6-7

Kessler Medical Rehabilitation Research

and Education Corporation (KMRREC)H133G000073 West Orange, NJ 3-61

Kessler Medical Rehabilitation Research

and Education Corporation (KMRREC)H133N000022 West Orange, NJ 2-34

LATAN H224A10028 Baton Rouge, LA 9-49

Learnimation ED-02-R-0012 New York, NY 3-90

Los Amigos Research and Education

Institute, Inc. (LAREI) H133B980024 Downey, CA 2-3

Los Amigos Research and Education

Institute, Inc. (LAREI) H133E003001 Downey, CA 3-1

Los Amigos Research and Education

Institute, Inc. (LAREI) H133E020732 Downey, CA 3-2

Los Amigos Research and Education

Institute, Inc. (LAREI) H133G010160 Downey, CA 2-61

Los Amigos Research and Education

Institute, Inc. (LAREI) H133N000029 Downey, CA 2-26
Grantees B-7

Los Amigos Research & Education

Institute, Inc. (LAREI) H133B031002 Downey, CA 2-4

Louisiana State University H133G020211 New Orleans, LA 4- 26

Maine CITE Coordinating Center H224A90047 Augusta, ME 9-50

Marquette University H133E020729 Milwaukee, WI 3-30

Marquette University H133G010069 Milwaukee, WI 2-98

Marquette University H133P020004 Milwaukee, WI 8-31

Martha L. Rose H133F030042 Kirksville, MO 8-8

Maryland Governor’s Office for

Individuals with Disabilities H224A90019 Baltimore, MD 9-51

Mashantucket Pequot Tribal Nation H133A031706 Mashantucket, CT 8-2

Massachusetts Institute of Technology H133A000500 Cambridge, MA 6-6

Massachusetts Rehabilitation

Commission H224C030016 Boston, MA 9-11

Mayo Medical Center H133A020507 Rochester, MN 2-46

Medical College of Wisconsin H133G020112 Milwaukee, WI 2- 99

Medical University of South Carolina H133G020218 Charleston, SC 5-15

Medical University of South Carolina H133G020239 Charleston, SC 2-93

Medical University of South Carolina H133G030117 Charleston, SC 2-94

Medical University of South Carolina H133G030151 Charleston, SC 4-41

MedStar Research Institute H133E990007 Washington, DC 3-5

Meeting the Challenge, Inc. H133D010004 Colorado Springs, CO 7-8

Meeting the Challenge, Inc. H133G000221 Colorado Springs, CO 6-13

Methodist Rehabilitation Center H133A020514 Jackson, MS 2-47

Michigan Disability Rights Coalition H224A50009 East Lansing, MI 9-53

Mississippi Department of

Rehabilitation Services H224A00032 Jackson, MS 9-55

Mississippi State University H133A020701 Mississippi State, MS 1-12

Mississippi State University H133B010101 Mississippi State, MS 1-5

Missouri Department of Labor and

Industrial Relations H224A30015 Independence, MO 9-56

Moss Rehabilitation Research Institute H133G020052 Philadelphia, PA 2-90

Motion Control, Inc. H133S020006 Salt Lake City, UT 3-82

Motion Control, Inc. H133S030177 Salt Lake City, UT 3-94

Mount Sinai School of Medicine H133A020501 New York, NY 2-49

Mount Sinai School of Medicine H133B980013 New York, NY 4-9

Mount Sinai School of Medicine H133G030026 New York, NY 4-34

Mount Sinai School of Medicine H133N000027 New York, NY 2-35

Mount Sinai School of Medicine H133P000001 New York, NY 8-28

Narrows Institute for Biomedical

Research H133G030069 New York, NY 3-62

National Rehabilitation Hospital/

MedStar Research Institute H133B031114 Washington, DC 2-9

National Rehabilitation Hospital/MRI H133A030804 Washington, DC 2-17

Nebraska Assistive Technology

Partnership H224C030025 Lincoln, NE 9-14

Nebraska Department of Education H224A90040 Lincoln, NE 9-58
B-8 Grantees

Neighborhood Legal Services, Inc. H224B020004 Buffalo, NY 6-17

NeuroMuscular Research Center H133G020108 Boston, MA 2-78

New Jersey Protection and

Advocacy, Inc. H224A20007 Trenton, NJ 9-61

New Mexico Department of Education H224C030012 Santa Fe, NM 9-15

New Mexico State Department of

Education H224A00017 Santa Fe, NM 9-62

New York State Office of Advocate

for Persons with Disabilities H224A00041 Albany, NY 9-63

Nian-Crae, Inc. H133S030197 Somerset, NJ 3-79

North Carolina Department of Health

and Human Services H224A00010 Raleigh, NC 9-64

North Carolina State University H133E990002 Raleigh, NC 3-23

North Carolina State University H133G000025 Raleigh, NC 6-14

North Dakota Department of Human

Services H224A30003 Cavalier, ND 9-66

North Dakota Protection and Advocacy

 Project H224C030014 Cavalier, ND 9-16

Northern Arizona University H224A40002 Phoenix, AZ 9-32

Northwestern University Rehabilitation

Institute Research Corporation H133A030807 Chicago, IL 2-16

Northwestern University H133E030030 Chicago, IL 3-15

Northwestern University H133E980023 Chicago, IL 3-11

Northwestern University H133G030143 Chicago, IL 3-53

Northwestern University H133P030002 Chicago, IL 8-23

Northwestern University H133P980014 Chicago, IL 8-20

Northwestern University H133P990006 Chicago, IL 8-21

Ohio State University Research

Foundation H224A40001 Columbus, OH 9-68

Ohio Valley Center for Brain Injury

Prevention and Rehabilitation H133A020503 Columbus, OH 2-51

Oklahoma State University H224A50007 Stillwater, OK 9-69

Oklahoma State University H224C030003 Stillwater, OK 9-18

ORC Macro ED-02-000128 Silver Spring, MD 6-19

Oregon Disabilities Commission H224A50002 Salem, OR 9-70

Oregon Health and Science University H133A031724 Portland, OR 4-16

Oregon Health and Science University H133A980027 Portland, OR 2-52

Oregon Health and Science University H133B990019 Portland, OR 2-11

Oregon Health and Science University H133D010002 Portland, OR 7-10

Oregon Health and Science University H133G000154 Portland, OR 2-89

Oregon Health and Science University H133G010040 Portland, OR 4-38

Oregon Health and Science University H133G020125 Portland, OR 4-39

Oregon Health and Science University H133G020231 Portland, OR 4-40

Oregon State University H133E030009 Corvallis, OR 3-24

Portland State University H133B990025 Portland, OR 4-10

Public Health Institute H133D010209 Oakland, CA 7-9

Rancho Los Amigos H133G020002 Downey, CA 2-62
Grantees B-9

Rehabilitation Engineering and

Assistive Technology Society of North

America (RESNA) H224B020001 Arlington, VA 9-1

Rehabilitation Engineering and

Assistive Technology Society of North

America (RESNA) H224C030002 Arlington, VA 9-24

Rehabilitation Institute of Chicago H133G010066 Chicago, IL 2-72

Rehabilitation Institute of Michigan H133G020128 Detroit, MI 2-79

Rehabilitation Institute Research

Corporation H133B031127 Chicago, IL 2-8

Rehabilitation Institute Research

Corporation H133B980021 Chicago, IL 2-7

Rehabilitation Institute Research

Corporation H133E020724 Chicago, IL 3-14

Rehabilitation Institute Research

Corporation H133G010058 Chicago, IL 2-73

Rehabilitation Institute Research

Corporation H133G010098 Chicago, IL 3-52

Rehabilitation Institute Research

Corporation H133G030204 Chicago, IL 2-74

Rehabilitation Institute Research

Corporation H133G80063 Chicago, IL 2-69

Rehabilitation Institute Research

Corporation H133G990046 Chicago, IL 2-70

Rhode Island Department of Human

Services H224A30012 Providence, RI 9-73

RTI International ED-01-CO-0052 Research Triangle Park, NC 6-20

RTI International H224B030001 Research Triangle Park, NC 9-65

San Diego State University H133G030191 San Diego, CA 2-64

San Francisco State University H133G000024 San Francisco, CA 3-43

San Francisco State University H133G020184 San Francisco, CA 4-18

Santa Clara Valley Medical Center

(SCVMC) H133A020524 San Jose, CA 2-42

Santa Clara Valley Medical Center

(SCVMC) H133N000007 San Jose, CA 2-27

Sargent College H133G020092 Boston, MA 1-18

Science Applications International

Corporation H133G010028 Arlington, VA 3-68

Sendero Group, LLC H133A011903 Davis, CA 3-31

Shepherd Center, Inc. H133G030004 Atlanta, GA 2-68

Shepherd Spinal Center, Inc. H133N000005 Atlanta, GA 2-30

Sheri P. Silfies H133F030024 Wilmington, DE 8-15

The Smith-Kettlewell Eye Research

Institute H133E001002 San Francisco, CA 3-3

The Smith-Kettlewell Eye Research

Institute H133G030080 San Francisco, CA 3-45
B-10 Grantees

The Smith-Kettlewell Eye Research

Institute H133G030118 San Francisco, CA 3-44

South Carolina Vocational

Rehabilitation Department H224C030024 West Columbia, SC 9-20

Southern University A&M College H133A031705 Baton Rouge, LA 8-3

Southwest Educational Development

Laboratory H133A031402 Austin, TX 6-11

Southwest Educational Development

Laboratory H133A990008 Austin, TX 6-10

Spaulding Rehabilitation Hospital H133A020513 Boston, MA 2-44

State of Delaware H224C030027 Wilmington, DE 9-2

State of Iowa Department for the Blind H133G020196 Des Moines, IA 3-54

State of Maryland H224C030015 Baltimore, MD 9-10

State of Minnesota Department of

Administration H224A90041 St. Paul, MN 9-54

State of Minnesota, Department of

Administration H224C030030 Maple Plain, MN 9-13

State University of New York (SUNY)

at Buffalo H133A990010 Buffalo, NY 6-8

State University of New York (SUNY)

at Buffalo H133E030025 Buffalo, NY 3-20

State University of New York (SUNY)

at Buffalo H133E980024 Buffalo, NY 3-18

State University of New York (SUNY)

at Buffalo H133E990005 Buffalo, NY 3-19

State University of New York (SUNY)

at Buffalo H133G010132 Buffalo, NY 2-85

Su-Je Cho, PhD H133F030018 Brooklyn, NY 8-16

Syracuse University H133A990001 Syracuse, NY 6-9

Syracuse University H133G000028 Syracuse, NY 1-20

Syracuse University H133G030150 Syracuse, NY 2-87

Talking Lights, LLC H133S020043 Boston, MA 3-77

Temple University H224A20006 Philadelphia, PA 9-71

Texas Southern University H133A031704 Houston, TX 8-5

Thomas Jefferson University Hospital H133N000023 Philadelphia, PA 2-36

Three Rivers Holding, LLC H133S020103 Mesa, AZ 3-69

Three Rivers Holdings, LLC H133S030016 Mesa, AZ 3-83

The Thresholds H133G990155 Chicago, IL 1-15

Through the Looking Glass H133A980001 Berkeley, CA 6-2

Through the Looking Glass H133G010054 Berkeley, CA 4-17

Touch Graphics ED-01-CO-0125 New York, NY 3-88

Touch Graphics ED-01-PO-3667 New York, NY 3-89

Touch Graphics H133S030036 New York, NY 3-91

TransCen, Inc. H133D010212 Rockville, MD 7-3

TranXecute H133S030030 Philadelphia, PA 3-92

TTAP H224A00003 Nashville, TN 9-63

TTAP H224A010002 Nashville, TN 9-76
Grantees B-11

United Cerebral Palsy

Associations, Inc. H133A980052 Atlanta, GA 6-5

University Legal Services H224A30001 Washington, DC 9-38

University of Akron H133A030810 Akron, OH 3-38

University of Alabama/Birmingham H133A011201 Birmingham, AL 6-1

University of Alabama/Birmingham H133A020509 Birmingham, AL 2-41

University of Alabama/Birmingham H133G000072 Birmingham, AL 2-58

University of Alabama/Birmingham H133N000016 Birmingham, AL 2-25

University of Arkansas H133G010156 Little Rock, AR 1-14

University of Arkansas/Little Rock H133B010501 Little Rock, AR 1-1

University of Arkansas/Pine Bluff H133G000192 Pine Bluff, AR 2-59

University of California H133P020009 Berkeley, CA 8-18

University of California/Berkeley H133G000083 Berkeley, CA 5-8

University of California, Davis H133B031118 Davis, CA 2-2

University of California/Davis H133B980008 Davis, CA 2-1

University of California, Davis H133G020137 Davis, CA 2-60

University of California, San Francisco H133B031102 San Francisco, CA 4-1

University of California/San Francisco H133B980045 San Francisco, CA 5-2

University of Colorado Health Sciences

Center H133A020402 Denver, CO 2-20

University of Colorado Health Sciences

Center H133G030149 Boulder, CO 5-9

University of Colorado Health Sciences

Center H133G030187 Denver, CO 3-46

University of Colorado Health Sciences

Center H224A40014 Denver, CO 9-35

University of Delaware H133G020103 Newark, DE 3-47

University of Florida H133E010106 Gainesville, FL 3-7

University of Florida H133P020005 Gainesville, FL 8-19

University of Guam H224C030023 Mangilao, GU 9-5

University of Hawaii at Manoa H133B980043 Honolulu, HI 1-2

University of Idaho H224A20017 Moscow, ID 9-43

University of Illinois H133G030079 Champaign, IL 3-51

University of Illinois at Chicago H133B000700 Chicago, IL 8-1

University of Illinois at Chicago H133B031134 Chicago, IL 4-4

University of Illinois at Chicago H133D010203 Chicago, IL 7-5

University of Illinois at Chicago H133E020715 Chicago, IL 3-13

University of Illinois at Chicago H133G010033 Chicago, IL 4-21

University of Illinois at Chicago H133G010093 Chicago, IL 4-20

University of Illinois at Chicago H133G010139 Chicago, IL 5-10

University of Illinois at Chicago H133G020027 Chicago, IL 5-11

University of Illinois at Chicago H133G020146 Chicago, IL 4-22

University of Illinois at Chicago H133G020217 Chicago, IL 4-23

University of Illinois at Chicago H133G990143 Chicago, IL 2-71

University of Illinois at Chicago H133P000005 Chicago, IL 8-22

University of Iowa H133A011803 Iowa City, IA 1-11

University of Iowa H133A021801 Iowa City, IA 3-34
B-12 Grantees

University of Iowa College of Law H133A031732 Iowa City, IA 4-14

University of Iowa College of Law H133B010102 Iowa City, IA 1-3

University of Kansas H133A010602 Lawrence, KS 3-35

University of Kansas H133A031727 Lawrence, KS 4-15

University of Kansas H133A980048 Lawrence, KS 6-6

University of Kansas H133B031133 Lawrence, KS 5-4

University of Kansas H133B980050 Lawrence, KS 5-3

University of Kansas H224A30013 Parsons, KS 9-47

University of Kansas Center for

Research, Inc. H133B000500 Lawrence, KS 4-5

University of Kansas Center for

Research, Inc. H133G010102 Lawrence, KS 3-55

University of Kansas Center for

Research, Inc. H224C030028 Lawrence, KS 9-8

University of Kansas Medical Center H133G000152 Kansas City, KS 4-25

University of Maryland H133G010111 Baltimore, MD 2-77

University of Maryland/

Baltimore County H133G000068 Baltimore, MD 2-75

University of Maryland/

Baltimore County H133G010023 Baltimore, MD 2-76

University of Massachusetts H133A021503 Boston, MA 5-7

University of Medicine & Dentistry of

New Jersey H133P020012 West Orange, NJ 8-25

University of Miami H133A011115 Miami, FL 2-15

University of Miami H133N000017 Miami, FL 2-29

University of Michigan H133E980007 Ann Arbor, MI 3-17

University of Michigan H133G000038 Ann Arbor, MI 4-27

University of Michigan H133G020060 Ann Arbor, MI 4-28

University of Michigan H133N000009 Ann Arbor, MI 2-32

University of Michigan H133P030004 Ann Arbor, MI 8-27

University of Michigan H133P990014 Ann Arbor, MI 8-23

University of Minnesota H133B031116 Minneapolis, MN 4-7

University of Minnesota H133G010064 Minneapolis, MN 2-81

University of Minnesota H133G010077 Minneapolis, MN 2-80

University of Minnesota H133G020037 Minneapolis, MN 5-13

University of Minnesota H133G020145 Minneapolis, MN 2-82

University of Minnesota H133G030058 Minneapolis, MN 4-30

University of Minnesota H133G030159 Minneapolis, MN 3-60

University of Missouri H133B031120 Columbia, MO 2-10

University of Missouri H133G020065 Columbia, MO 4-31

University of Missouri/Columbia H133A011802 Columbia, MO 1-13

University of Missouri/Columbia H133D010201 Columbia, MO 7-7

University of Missouri/Columbia H133N000012 Columbia, MO 2-33

University of Montana H133B030501 Missoula, MT 1-6

University of Montana H224A10002 Missoula, MT 9-57

University of New Hampshire H133G000034 Durham, NH 4-32

University of New Hampshire H133G000150 Durham, NH 2-83
Grantees B-13

University of New Hampshire

Technology Partnership H224A10015 Concord, NH 9-60

University of North Carolina H133G000132 Chapel Hill, NC 1-21

University of North Carolina at

Chapel Hill H133G020133 Chapel Hill, NC 3-63

University of Oklahoma H133G030063 Norman, OK 1-22

University of Oregon H133G010167 Eugene, OR 4-36

University of Pennsylvania H133B031109 Philadelphia, PA 4-11

University of Pittsburgh H133A011107 Pittsburgh, PA 2-19

University of Pittsburgh H133A020502 Pittsburgh, PA 2-54

University of Pittsburgh H133A021916 Pittsburgh, PA 3-40

University of Pittsburgh H133E010302 Pittsburgh, PA 3-26

University of Pittsburgh H133E990001 Pittsburgh, PA 3-25

University of Pittsburgh H133G020159 Pittsburgh, PA 3-65

University of Pittsburgh H133N000019 Pittsburgh, PA 2-37

University of Pittsburgh H133P970013 Pittsburgh, PA 8-29

University of Rochester H133A031105 Rochester, NY 8-4

University of South Carolina School

of Medicine H224A60001 Columbia, SC 9-74

University of South Florida H133B980005 Tampa, FL 4-2

University of South Florida H133B990022 Tampa, FL 4-3

University of South Florida H133G010046 Lakeland, FL 3-50

University of South Florida H133G030014 Tampa, FL 4-19

University of Southern California H133G000062 Los Angeles, CA 2-63

University of Texas at Austin H224A20012 Austin, TX 9-77

University of Texas Medical Branch H133A020102 Galveston, TX 2-23

University of Texas Medical Branch H133P990001 Galveston, TX 8-28

The University of Texas Southwestern

Medical Center H133A020104 Dallas, TX 2-22

The University of Texas Southwestern

Medical Center H133A020526 Dallas, TX 2-55

University of the Virgin Islands H224A50005 St. Thomas, USVI 9-78

University of the Virgin Islands H224C030004 St. Thomas, VI 9-23

University of Washington H133A020103 Seattle, WA 2-24

University of Washington H133A020508 Seattle, WA 2-57

University of Washington H133A031739 Seattle, WA 3-41

University of Washington H133B031129 Seattle, WA 2-13

University of Washington H133D010306 Seattle, WA 6-15

University of Washington H133N000003 Seattle, WA 2-40

University of Washington H224A020001 Seattle, WA 9-82

University of Wisconsin/Madison H133E030012 Madison, WI 3-29

University of Wisconsin/Madison H133E980008 Madison, WI 3-27

University of Wisconsin/Madison H133E990006 Madison, WI 3-28

University of Wisconsin/Milwaukee H133A010403 Milwaukee, WI 3-42

University of Wisconsin/Stout H133B980040 Menomonie, WI 1-9

University of Wyoming H224A60002 Laramie, WY 9-85

University of Wyoming H224C030010 Laramie, WY 9-28
B-14 Grantees

Utah State University H133G030013 Logan, UT 3-67

Utah State University H224A90051 Logan, UT 9-79

Utah State University H224C030008 Logan, UT 9-21

Vanderbilt University School of

Medicine H133G020097 Nashville, TN 3-66

Vcom3D, Inc. ED-01-Q-0003 Orlando, FL 1-28

Veritune, Inc. H133S030154 Chicago, IL 1-26

Vermont Department of Aging and

Disabilities H224A00023 Waterbury, VT 9-80

Vermont Department of Aging and

Disabilities H224C030011 Waterbury, VT 9-22

Virginia Commonwealth University H133A020516 Richmond, VA 2-56

Virginia Commonwealth University H133B980036 Richmond, VA 1-8

Virginia Commonwealth University H133G020158 Richmond, VA 1-25

Virginia Commonwealth University H133N000015 Richmond, VA 2-39

Virginia Department of Rehabilitative

Services (DRS) H224C030007 Richmond, VA 9-25

Virginia Department of Rehabilitative

Services (DRS) H224A00009 Richmond, VA 9-81

Visibooks, LLC H133S030008 Frederick, MD 4-49

Vortant Technologies, LLC H133S030187 Weaverville, NC 3-80

Washington State Department of

Community Trade & Economic

Development H224C030032 Seattle, WA 9-26

Washington University H133A010701 St. Louis, MO 3-36

Wayne State University H133G020151 Detroit, MI 4-29

Wayne State University and

Rehabilitation Institute of Michigan H133A020515 Detroit, MI 2-45

West Virginia University Center for

Excellence in Disabilities H224A20011 Morgantown, WV 9-83

The Western New York Independent

Living Project, Inc. H133B000002 Buffalo, NY 4-8

Western Oregon University H133A010610 Eugene, OR 3-39

Western Oregon University H133G030179 Eugene, OR 4-37

WGBH Educational Foundation H133G010170 Boston, MA 3-56

WGBH Educational Foundation H133G020091 Boston, MA 3-57

WGBH Educational Foundation H133G030104 Boston, MA 3-58

William Craelius, PhD H133F030011 Piscataway, NJ 8-9

Wisconsin Assistive Technology

Program H224A00013 Madison, WI 9-84

Wisconsin Department of Health and

Family Services H224C030006 Madison, WI 9-27

World Institute on Disability H133A990006 Oakland, CA 6-3

Xiaoxing He, MD, MPH H133F030023 Chicago, IL 8-13
Principal Investigators

Principal Investigators D-3

Abbey, Susan

Wisconsin Assistive Technology Program

608/266-1794 ............................................................. 9-84

Abery, Brian, PhD

University of Minnesota

612/625-5592 ............................................................. 2-81

Adkins, Rod, PhD

Los Amigos Research and Education Institute, Inc.

(LAREI)

562/401-7048 ............................................................. 2-26

Albin, Richard, PhD

University of Oregon

541/346- 2464 ............................................................ 4-36

Ammerman, Robert T., PhD

Children’s Hospital Medical Center

513/636-8209 ............................................................. 4-35

Apple, David F., Jr., MD

Shepherd Spinal Center, Inc.

404/350-7353 ............................................................. 2-30

Armstrong, Thomas J., PhD

University of Michigan

734/763-3742 ............................................................. 3-17

Avery-Meints, Sheryl

Michigan Disability Rights Coalition

517/373-3390 ............................................................. 9-53

Avestruz, Al-Thaddeus

Talking Lights, LLC

617/242-0050 ............................................................. 3-77

Bailey, M. Nell

Rehabilitation Engineering and Assistive

Technology Society of North America (RESNA)

703/524-6686, ext. 305 (V); 703/524-6639 (TTY) ..... 9-1

Bakke, Matthew H., PhD

Gallaudet University

202/651-5335 (V/TTY) ......................................... 3-4, 3-6

Barner, Kenneth, PhD

University of Delaware

302/831-6937 ............................................................. 3-47

Bauer, Steve, PhD

State University of New York (SUNY) at

Buffalo

716/829-3141, ext. 117; 800/628-2281 (TTY) ......... 3-20

Beck, Jim

Alaska Department of Labor and

Workforce Development

800/478-4378 (V/TTY, in state only);

907/269- 3569 (V/TTY) ............................................. 9-30

Becker, Bruce, MD

Inland Northwest Health Service

509/473-6043 ............................................................. 4-43

Bednarczyk, Angela, PhD

Institute for Disabilities Research and Training

301/942-4326 ............................................................. 3-85

Beer, Randall F., PhD

Rehabilitation Institute Research Corporation

312/238-1408 ............................................................. 2-74

Behrmann, Gregory P.

EM Photonics Incorporated

302/456-9003 ........................................................... 2-100

Belknap, Katherine

ORC Macro

301/608-8998, ext. 100; 800/227-0216 (V);

301/608-8998 (V); 301/608-8912 (TTY) .................. 6-19

Bell, Kathleen R., MD

University of Washington

206/685-0935 ............................................................. 2-57

Beltz-Mayhew, Shannon

Intelligent Automation, Inc.

301/294-5230 ............................................................. 3-76

Bernard, Randy

Georgia Institute of Technology

404/385-4691 ............................................................. 3-10

Berners-Lee, Tim

Massachusetts Institute of Technology

617/253-5702 ............................................................... 6-6

Bertocci, Gina E., PhD

University of Pittsburgh

412/383-6595 ............................................................. 3-26
D-4 Principal Investigators

Beukelman, David

InvoTek, Inc.

402/472-5463 ............................................................. 3-70

Blair, Martin E.

Utah State University

435/797- 3886 ............................................................ 9-79

Blanck, Peter D., JD

University of Iowa College of Law

319/335-9043 ................................... 1-3, 1-11, 3-34, 4-14

Block, Pamela, PhD

Brown University

401/444-1876 ............................................................. 2-92

Bodine, Cathy

University of Colorado Health

Sciences Center

303/315-1281 .................................................... 3-46, 9-35

Bombardier, Charles, PhD

University of Washington

206/543-8171 ............................................................. 2-40

Boninger, Michael L., MD

University of Pittsburgh

412/365-4850 .................................................... 2-19, 2-37

Botkin, Bradley C.

WGBH Educational Foundation

617/300-3902

617/300-3700 ............................................................. 3-58

Brabyn, John A., PhD

The Smith-Kettlewell Eye Research

Institute

415/345-2110 ...................................................... 3-3, 3-45

Braddock, David L., PhD

University of Colorado Health

Sciences Center

303/492-0639 ............................................................... 5-9

Braunschweig, Carol, PhD

University of Illinois at Chicago

312/996-8055 ............................................................. 2-71

Braveman, Brent, PhD

University of Illinois at Chicago

312/355- 2656 ........................................................... 4-23

Brienza, David M., PhD

University of Pittsburgh

412/383-6571 (V); 412/383- 6598 (TTY) ................. 3-25

Brisben, Amy, PhD

AnthroTronix, Inc.

301/495- 0770, ext. 344 ............................................. 3-86

Brogdon, Mary

State of Minnesota Department of

Administration

651/297-1554 ............................................................. 9-54

Brooks, Laurie

Oregon Disabilities Commission

800/677-7512 (V/TTY, in state only);

503/361-1201 (V/TTY) .............................................. 9-70

Brown, Catana, PhD, OTR

University of Kansas Medical Center

913/588-7195 ............................................................. 4-25

Brubaker, Clifford, PhD

University of Pittsburgh

412/383-6571 (V); 412/383- 6598 (TTY) ........ 3-25, 8-29

Burkhauser, Richard, PhD

Cornell University

607/255-9536 (V); 607/255-2891 (TTY) ............. 1-7, 7-2

Bryant, Elizabeth A.

Georgia Institute of Technology

404/894-0254 ............................................................. 6-16

Bryen, Diane Nelson, PhD

Temple University

215/204-1356 ............................................................. 9-71

Budde, James, EdD

University of Kansas

785/864-4095 ............................................................... 6-6

Burkhauser, Richard, PhD

Cornell University

607/255-9536 (V); 607/255-2891 (TTY) .................... 1-7

Bushnik, Tamara, PhD

Santa Clara Valley Medical Center (SCVMC)

408/793-6446 .................................................... 2-27, 2-42
Principal Investigators D-5

Buxbaum, Laurel, PsyD

Albert Einstein Healthcare Network

215/456-5953 ............................................................. 2-91

Buzzard, Martha Cook, Rebecca

University of Oklahoma

405/325-1073 ............................................................. 1-22

Camacho, Thomas J.

CNMI Governor’s Council on Developmental

Disabilities

670/664-7000 .................................................... 9-17, 9-67

Cardenas, Diana D., MD

University of Washington

206/543-8171 ............................................................. 2-40

Carey, James R., PhD, PT

University of Minnesota

612/626-2746 .................................................... 2-80, 2-82

Carney, Nancy, PhD

Oregon Health and Science University

503/494-0663 ............................................................. 2-52

Carpenter, David

Veritune, Inc.

773/793-6530 ............................................................. 1-26

Carroll, Raymond A.

Rhode Island Department of Human Services

800/752-8088 (in state only); 401/421-7005,

ext. 390 (V); 401/421-7016 (TTY) ............................. 9-73

Carroll, Richard, PhD

Arizona University Center on Disabilities

928/523-7033 ............................................................... 5-1

Cats-Baril, William L., PhD

Data Harbor

312/953- 8748 ............................................................ 4-46

Certo, Nicholas, PhD

San Francisco State University

415/338-2503 ............................................................. 4-18

Chambers, Richard, MD

Rancho Los Amigos

562/401-7177 ............................................................. 2-62

Chang, Leonard

TranXecute

610/527-9288 ............................................................. 3-92

Charuhas, Christopher

Visibooks, LLC

240/344- 1321 ............................................................ 4-49

Cherney, Leora, PhD

Rehabilitation Institute Research

Corporation

312/238-1117 ............................................................. 3-52

Chesnut, Randall, MD

Oregon Health and Science University

503/494-0663 ............................................................. 2-89

Childress, Dudley S., PhD

Northwestern University

312/238-6500 ...........................................3-11, 3-12, 3-15

Cho, Su-Je, PhD

718/646-8255 ............................................................. 8-16

Christensen, Keith, MLA

Utah State University

435/797-3997 ............................................................. 3-67

Cicerone, Keith D., PhD

JFK Johnson Rehabilitation Institute

732/906-2640 ............................................................. 2-48

Cifu, David X., MD

Virginia Commonwealth University

804/828-0861 ............................................................. 2-39

Clark, Florence, PhD, OTR

University of Southern California

323/442-2875 ............................................................. 2-63

Collins, James J., PhD

Boston University

617/353- 0390 ............................................................ 8-24

Collins, Michael

University of Iowa College of Law

202/521-2930 ............................................................... 1-3

Cook, Judith A., PhD

University of Illinois at Chicago

312/422-8180, ext. 19 .................................................. 8-1
D-6 Principal Investigators

Cook, Rebecca

University of Oklahoma

405/325-1073 ............................................................. 1-22

Corrigan, John D., PhD

Ohio Valley Center for Brain Injury

Prevention and Rehabilitation

614/293-3830 ............................................................. 2-51

Craelius, William, PhD

732/445-2369 ............................................................... 8-9

Dalto, Michael

State of Maryland

410/554-9233; 800/832-4827 ................................... 9-10

Davies, Daniel K.

AbleLink Technologies, Inc.

719/592-0347 ...........................................3-73, 4-44, 4-48

de Jong, Jim

University of Missouri/Columbia

573/882-3600 (V) ......................................................... 7-7

DeLisle, Norm

Department of Career Development/

Rehabilitation Services

517/333-2477 ............................................................. 9-12

DePompei, Roberta

University of Akron

330/972-6114 ............................................................. 3-38

DeRuyter, Frank, PhD

Duke University

919/684- 6271 ..........................................3-21, 3-22, 3-37

DeVivo, Michael J., DrPH

University of Alabama/Birmingham

205/934-3320 ............................................................... 6-1

Dewald, Julius, PT, PhD

Rehabilitation Institute Research

Corporation

312/238-2210 .................................................... 2-69, 3-53

Di Fabio, Richard P., PhD

University of Minnesota

612/626-4973 ............................................................. 3-60

Diaz-Arrastia, Ramon R., MD, PhD

The University of Texas Southwestern

Medical Center

214/648-6409 ............................................................. 2-55

Dikjers, Marcel, PhD

Mount Sinai School of Medicine

212/659-8587 ............................................................. 4-34

Ditunno, John F., MD

Thomas Jefferson University Hospital

215/955-5580 ............................................................. 2-36

Doe, Tanis, PhD

California Foundation for Independent

Living Centers (CFILC)

916/325-1690 (V); 916/325-1695 (TTY) .................. 3-32

Donovan, William H., MD

The Institute for Rehabilitation and

Research (TIRR)

713/797-5912 ............................................................. 2-38

Drum, Charles, JD, PhD

Oregon Health and Science University

503/494-8047 ...........................................4-39, 4-40, 7-10

Dunlap, Glen, PhD

University of South Florida

813/974-4612 ............................................................... 4-2

Dutta, Alo PhD

Southern University A&M College

225/771-2819 ............................................................... 8-3

Ellien, Valerie, PhD CRC

Mashantucket Pequot Tribal Nation

860/396-2105 ............................................................... 8-2

Ellison, Marsha, PhD

Boston University

617/353-3549 ............................................................. 8-26

Elrod, Susanne

University of Texas at Austin

800/828-7839 (V/TTY, in state only);

512/471-7621 (V); 512/471-1844 (TTY) .................. 9-77

Engrav, Loren H., MD

University of Washington

206/731-3183 ............................................................. 2-24
Principal Investigators D-7

Epps, Irvine E., EdD

Texas Southern University

713/313-7224 ............................................................... 8-5

Erickson, Karen, PhD

University of North Carolina at Chapel Hill

919/966-8828 ............................................................. 3-63

Erler, Kevin, PhD

Automatic Sync Technologies

510/582-3437 ............................................................. 3-71

Everhart Skeels, Sarah

Brown University

401/444-1876 ............................................................. 2-92

Farkas, Marianne, ScD

Boston University

617/353-3549 ...................................................... 4-6, 5-12

Farra-San Nicolas, Heidi E., PhD

University of Guam

671/735-2482 (V) ................................................ 9-5, 9-41

Farver, Kent A.

Iowa Department for the Blind

515/281-1256 .................................................... 1-10, 3-54

Fauerbach, James A., PhD

Baltimore Regional Burn Center

410/550-0894 ............................................................. 2-21

Faulhaber, Charles B., PhD

University of California/Berkeley

510/642-3781 ............................................................... 5-8

Fernhall, Bo, PhD

Syracuse University

315/443- 2114 ............................................................ 2-87

Ferrante, Richard

University of South Carolina School of Medicine

803/935-5231 (V) ....................................................... 9-74

Ficarro, John M.

Connecticut Department of Social Services

800/537-2549 (in state only);

860/424-4881 (V); 860/424-4839 (TTY) .................. 9-36

Field, Gerry

WGBH Educational Foundation

617/300- 3700 ............................................................ 3-56

Fischlowitz-Leong, Barbara

ATRC

808/532-7110 ............................................................. 9-42

Fisher, Nadine M., EdD

State University of New York (SUNY) at Buffalo

716/829-3141, ext. 145 .............................................. 2-85

Fletcher, Valerie

Adaptive Environments Center, Inc.

617/695-1225, ext. 26 .................................................. 7-1

Flint, James

Nian-Crae, Inc.

732/445-2369 ............................................................. 3-79

Foley, Susan, PhD

University of Massachusetts

617/287-4317 ............................................................... 5-7

Follansbee, Robert, EdD

Education Development Center, Inc.

617/969-7100 ............................................................. 3-59

Forrester, J. Chase, JD

KATS Network Coordinating Center

800/327-5287 (V/TTY, in state only); 502/327-

0022 (V/TTY); 502/327-9855 (TTY) ......................... 9-48

Freed, Geoff

WGBH Educational Foundation

617/300- 3400 ............................................................ 3-57

Frieden, Lex

The Institute for Rehabilitation and Research (TIRR)

713/797-5283 ............................................................... 7-6

Friedman, Robert, PhD

University of South Florida

813/974-4640 ............................................................... 4-3

Friesen, Barbara, PhD

Portland State University

503/725-8118 ............................................................. 4-10

Fujiura, Glenn T., PhD

University of Illinois at Chicago

312/413-1977 ............................................................. 5-10

Fury, Carol

State of Minnesota, Department of Administration

763/479-8239 ............................................................. 9-13
D-8 Principal Investigators

Galea’i, Pete P.

Division of Vocational Rehabilitation

011/684/699-1529 (V); 011/684/233-

7874 (TTY) ................................................................. 9-31

Gater, David R., MD, PhD

University of Michigan

734/936-7052 ............................................................. 2-32

Gattis, Jr., Robert H.

Meeting the Challenge, Inc.

719/578-8448 ...................................................... 6-13, 7-8

Gay, Jane, RN

Iowa University Center for Excellence in

Disabilities

319/356-4463 ............................................................. 9-46

Giacino, Joseph T., PhD

JFK Johnson Rehabilitation Institute

732/205-1461 ............................................................. 2-18

Gilbride, Dennis, PhD

Syracuse University

315/443-5264 ............................................................. 1-20

Gill, Carol J., PhD

University of Illinois at Chicago

312/355-0550 (V); 312/996-4664 (TTY) .................. 4-22

Glang, Ann E., PhD

Western Oregon University

541/346-0594 ............................................................. 4-37

Glenn, Mel B., MD

Spaulding Rehabilitation Hospital

617/573-2625 ............................................................. 2-44

Golden, Diane, PhD

Missouri Department of Labor and

Industrial Relations

800/647-8557 (V, in state only); 800/647-

8558 (TTY, in state only); 816/373-5193 (V);

816/373-9315 (TTY) .................................................. 9-56

Goldman, Amy S.

Temple University

215/204-1356 ............................................................. 9-71

Goodwin, Dianne

Blue Sky Designs, Inc.

651/603- 0828 ............................................................ 3-78

Gordon, Wayne A., PhD

Mount Sinai School of Medicine

212/659-9372 ...................................................... 2-49, 4-9

Gray, David, B., PhD

Washington University

314/286-1658 ............................................................. 3-36

Green, David, MD, PhD

Rehabilitation Institute Research Corporation

312/238-4701 ............................................................. 2-70

Groah, Suzanne L., MD

National Rehabilitation Hospital/

MedStar Research Institute

202/877-1196 ............................................................... 2-9

Gullett, Barbara

Arkansas Rehabilitation Services

800/828-2799 (V/TTY, in state only); 501/666-

8868 (V/TTY) ............................................................. 9-33

Gunderson, Jon, PhD

University of Illinois

217/244-5870 ............................................................. 3-51

Gunther, Wilhelmina

IATP

800/852-5110 (V/TTY, in state only); 217/522-

7985 (V/TTY); 217/522-9966 (TTY) ......................... 9-44

Gunther, Wilhemina

Illinois Department of Human Services

217/522-7985 ............................................................... 9-6

Habtes, Yegin

University of the Virgin Islands

340/693-1323 .................................................... 9-23, 9-78

Hagglund, Kristofer, PhD

University of Missouri/Columbia

573/884-1688 ............................................................. 2-33

Hagner, David, PhD

University of New Hampshire

603/862-4320 ............................................................. 4-32

Hammel, Joy

University of Illinois at Chicago

312/996-3513 ............................................................. 4-21
Principal Investigators D-9

Hammond, Flora M., MD

Charlotte Mecklenburg Hospital Authority

704/355-4330 ............................................................. 2-50

Hammond, Marilyn, PhD

Utah State University

435/797-3811 ............................................................. 9-21

Hamner, Doris, PhD

University of Massachusetts

617/287-4364 ............................................................... 5-7

Hand, Gary

ATTAIN, Inc.

317/486-8808 (V); 317/486-8809 (TTY);

800/528-8246 (in-state only) ..................................... 9-45

Hanks, Robin A., PhD

Wayne State University and Rehabilitation

Institute of Michigan

313/745-9763 ............................................................. 2-45

Hanna, Nancy

Washington State Department of Community

Trade & Economic Development

360/725-2856 ............................................................. 9-26

Hanson, Mary Ann, PhD

Center for Career and Community Research

651/222-3540 ............................................................. 1-27

Harkins, Judy, PhD

University of Wisconsin/Madison

202/561-5257 ............................................................. 3-28

Harrington, Charlene, PhD, RN

University of California, San Francisco

415/476-4030 ............................................................... 4-1

Harris, Gerald F., PhD, PE

Marquette University

414/288-0698 .................................................... 2-98, 8-31

Hart, Karen A., PhD

The Institute for Rehabilitation and Research

(TIRR)

713/797-5946 ............................................................. 6-12

Hart, Tessa, PhD

Albert Einstein Healthcare Network

215/456-6544 .................................................... 2-53, 2-90

Harville, Benjamine

California Department of Rehabilitation

916/263-8950 ............................................................. 9-34

He, Xiaoxing, MD, MPH

312/695-1811 ............................................................. 8-13

Heinemann, Allen W., PhD

Northwestern University Rehabilitation

Institute Research Corporation

312/238-2802 ...........................................2-16, 8-20, 8-23

Heller, Tamar, PhD

University of Illinois at Chicago

800/996-8845 (V); 312/413-1510 (V);

312/413-0453 (TTY) ........................................... 4-4, 8-22

Henter, Ted C.

Henter Math, LLC

727/347-1313 ............................................................. 3-75

Herbert, James T., PhD

814/863-3421 ............................................................. 8-10

Hernandez, Brigida, PhD

DePaul University

773/325-4840 ............................................................. 1-16

Hernandez, Mario, PhD

University of South Florida

813/974-4651 ............................................................. 4-19

Herndon, David, MD

University of Texas Medical Branch

409/770-6731 ............................................................. 2-23

Hiatt, Ricki

North Carolina Department of Health and

Human Services

919/850-2787 (V/TTY) .............................................. 9-64

Hibbard, Mary R., PhD

Mount Sinai School of Medicine

212/659-9374 ............................................................. 8-28

High Jr., Walter M., PhD

The Institute for Rehabilitation and

Research (TIRR)

713/666-9550 .................................................... 2-12, 2-97
D-10 Principal Investigators

Hinton, Daniel E.

Science Applications International Corporation

703/248-7717 ............................................................. 3-68

Holland, Janice A.

West Virginia University Center for Excellence

in Disabilities <body>304/766-4694 (V)

800/841- 8436 (V/TTY, in state only); 304/293-

4692 (V/TTY) ............................................................. 9-83

Holliday, Greg, PhD

University of Missouri/Columbia

573/882-8329 ............................................................. 1-13

Holm, Margo, PhD

University of Pittsburgh

412/383-6621 ............................................................. 3-65

Houston, Vern L., PhD

Narrows Institute for Biomedical Research

212/951-3339 ............................................................. 3-62

Houtenville, Andrew J., PhD

Cornell University

607/255-5702 (V); 607/255-2891 (TTY) ........... 5-6, 5-14

Howe, Marylyn

Children’s Hospital

617/355-7167 (TTY) .................................................. 9-52

Huang, Larke, PhD

Georgetown University

202/687-8617 (V); 202/687-5503 (TTY) .................... 2-5

Hughes, Rosemary B., PhD

Baylor College of Medicine

713/960-0505 .................................................... 2-95, 4-42

Hull, Maury, PhD

University of California, Davis

530/752-6220 ............................................................. 2-60

Hunter-Zaworski, Katharine, PhD

Oregon State University

541/737-4982 ............................................................. 3-24

Hursh, Norman, ScD

Sargent College

617/353-2709 ............................................................. 1-18

Ingham, Kenneth R., PhD

Amazability, Inc.

617/795-0134 ............................................................. 3-87

Jackson, Amie B., MD

University of Alabama/Birmingham

205/934-3330 ............................................................. 2-25

Jaco, Linda

Oklahoma State University

800/257- 1705 (V/TTY); 405/744-9864.................... 9-18

Jakobs, Thomas

InvoTek, Inc.

479/632-4166 .................................................... 3-70, 3-84

Jette, Alan M., PhD

Boston University

617/353- 2704 ..................................................... 5-5, 8-25

Johns, Alicia C.

University Legal Services

202/547-0198, ext. 134 .............................................. 9-38

Johnson, Kurt, PhD

University of Washington

206/543-3677 ...........................................3-41, 6-15, 9-82

Johnston, Mark V., PhD

University of Medicine & Dentistry of

New Jersey

973/731-3600 ............................................................. 8-25

Jones, Cynthia

Center for an Accessible Society

Exploding Myths, Inc.

619/232-2727, ext. 111 (V); 619/234-

3130 (TTY) ................................................................... 6-4

Jones, Erica C., MPH

Public Health Institute

510/285-5600 (V/TTY) ................................................ 7-9

Jones, Michael, PhD

Georgia Centers for Advanced

Telecommunications Technology (GCATT)

404/352-2020 ............................................................... 3-8

Jones, Robin A.

University of Illinois at Chicago

312/996-1059 ............................................................... 7-5
Principal Investigators D-11

Kaplan, Shelley

Georgia Tech Research Corporation

404/385-0636 ............................................................... 7-4

Karshmer, Arthur I., PhD

University of South Florida

863/667-7067 ............................................................. 3-50

Keating, Thomas, PhD

Eugene Research Institute

541/342-3763 ............................................................. 3-64

Keilhofner, Gary, PhD

University of Illinois at Chicago

312/996-4973 ............................................................. 4-23

Kemp, Bryan J., PhD

Los Amigos Research and Education Institute,

Inc. (LAREI)

562/401-7402 ........................................................ 2-3, 2-4

Kennedy Smith, William, MD

Center for International Rehabilitation

312/926-0030 .................................................... 3-12, 3-16

Kessler, Mimi

Georgia Institute of Technology

404/894-0953 ............................................................. 3-33

Kickul, Grady

DakotaLink

605/773-3195 (V) ....................................................... 9-75

Kiernan, William E. PhD

Institute for Community Inclusion

617/287-4357 ............................................................... 1-4

Killeen, Mary

CESSI

703/619-1703 ............................................................. 1-23

King, Rosemarie B., PhD, RN

Rehabilitation Institute Research Corporation

312/908-8038 ............................................................. 2-73

Kirchner, Corinne, PhD

American Foundation for the Blind

212/502-7640 ............................................................. 4-33

Kirshbaum, Megan, PhD

Through the Looking Glass

510/848-1112 ...................................................... 4-17, 6-2

Kniskern, Joy

Georgia Department of Labor

404/638-0387 ...................................................... 9-4, 9-40

Knorr, Kenneth

Virginia Department of

Rehabilitative Services

804/662-9995 .................................................... 9-25, 9-81

Koon, Denise

South Carolina Vocational

Rehabilitation Department

803/896-6570 ............................................................. 9-20

Kowalske, Karen

The University of Texas

Southwestern Medical Center

214/648-2288 ............................................................. 2-22

Kraft, George H., MD

University of Washington

206/543-7272 ............................................................. 2-13

Krahn, Gloria, PhD

Oregon Health and Science

University

503/494-8364 ............................................................. 2-11

Krause, James S., PhD

Medical University of South

Carolina

843/792-1337 ................................. 2-93, 2-94, 4-41, 5-15

Kreutzer, Jeffrey S., PhD

Virginia Commonwealth University

804/828-9055 ............................................................. 2-56

Kylstra, Bart

415/385-4508 ............................................................. 3-72

Lakin, Charlie, PhD

University of Minnesota

612/624-5005 ...................................................... 4-7, 5-13

Lammertse, Daniel P., MD

Craig Hospital

303/789- 8220 ................................................... 2-14, 2-28

Landau, Steven

Touch Graphics

646/515-3492 ...........................................3-88, 3-89, 3-91
D-12 Principal Investigators

Landsberger, Samuel, ScD

Los Amigos Research and

Education Institute, Inc. (LAREI)

562/401- 7994; 562/401-7161 ............................. 3-1, 3-2

Lane, Joseph

State University of New York (SUNY) at Buffalo

716/829-3141 (V); 800/628-2281 (TTY) .................. 3-18

Langley, Karen

Massachusetts Rehabilitation Commission

617/204-3623 ............................................................. 9-11

Langton, Anthony J., MS

United Cerebral Palsy Associations, Inc.

877/835-7335; 404/385-0633 ..................................... 6-5

LaPlante, Mitchell P., PhD

University of California/San Francisco

415/502-5210 (V, General Information);

415/502-5216 (TTY) .................................................... 5-2

Larson, Sheryl, PhD

University of Minnesota

612/624-6024 .................................................... 4-30, 5-13

Lauer, Geoffrey

Brain Injury Association of America, Inc.

608/819-0742 ............................................................. 1-24

Lee, Judith A.

North Dakota Protection and Advocacy Project

701/265-4807 .................................................... 9-16, 9-66

LeJeune,B.J.

Mississippi State University

662/325-2001 ............................................................. 1-12

Lence, Ellen

New Jersey Protection and Advocacy, Inc.

800/342-5832 (V, in state only);

609/633-7106 (TTY); 609/292-9742 (NJ P&A

Intake Unit) ................................................................. 9-61

Levin, Harvey S., PhD

Baylor College of Medicine

713/798-4860 ............................................................. 2-18

Lezotte, Dennis C., PhD

University of Colorado Health Sciences Center

303/315-6873 ............................................................. 2-20

Loux, Donny

Dept. of Human Resources

888/337- 3839 (V, in state only); 775/687-

4452 (V); 775/687-3388 (TTY) ................................. 9-59

Lysack, Catherine, PhD

Wayne State University

313/577-2297 ............................................................. 4-29

Macciocchi, Stephen

Shepherd Center, Inc.

404/350-7553 ............................................................. 2-68

Madaus, Joseph W., PhD

Joseph W. Madaus, PhD

860/486-0178 ............................................................... 8-6

Magrab, Phyllis, PhD

Georgetown University

202/687-8617 (V); 202/687-5503 (TTY) .................... 2-5

Malec, James F., PhD

Mayo Medical Center

507/255- 3116 ............................................................ 2-46

Mann, William C., PhD

University of Florida

352/392-2617 ...................................................... 3-7, 8-19

Manning, Sarah

Learnimation .............................................................. 3-90

Martinez, Kathy

World Institute on Disability

510/251-4326 ............................................................... 6-3

Matheis, Dave

Kentucky Department of Vocational

Rehabilitation

502/564-4440 ............................................................... 9-9

May, Michael

Sendero Group, LLC

530/757-6800 ............................................................. 3-31

McAllister, Thomas W., MD

Dartmouth College

603/650-5824 ............................................................. 2-84

McCann, William R.

Dancing Dots Braille Music Technologies, LP

610/783-6692 ............................................................. 3-93
Principal Investigators D-13

McCoy, Taffy (M.L.), PhD

The Thresholds

773/880- 6260, ext. 230 ............................................. 1-15

McCrory, Mac

Oklahoma State University

800/257- 1705 (V/TTY); 405/744-9864 (V).............. 9-69

McDonald, Craig, MD

University of California/Davis

530/752-2903 (V) .................................................. 2-1, 2-2

McGregor, Gail

University of Montana

800/732- 0323 (V/TTY); 406/243-5676 (V/TTY) ..... 9-57

McGuire, John, MD

Medical College of Wisconsin ................................... 2-99

McKinley, William O., MD

Virginia Commonwealth University

804/828-0861 ............................................................. 2-39

McNeal, Donald, PhD

Los Amigos Research and Education Institute, Inc.

(LAREI)

562/401-7994 (V) ......................................................... 3-1

Meidenbauer, Nancy

Rehabilitation Engineering and Assistive

Technology Society of North America (RESNA)

703/524-6686. ext. 304 (V); 703/524-6639 (TTY) ... 9-24

Menz, Fredrick E., PhD

University of Wisconsin/Stout

715/232-1389 (V); 715/232-5025 (TTY) .................... 1-9

Meythaler, Jay M., JD, MD

University of Alabama/Birmingham

205/934-2088 ............................................................. 2-58

Milchus, Karen

Georgia Institute of Technology Center for

Assistive Technology & Environmental Access

404/894-0393 ............................................................... 3-9

Miller, Freeman, MD

Alfred I. duPont Hospital for Children

302/651-5921 ............................................................. 2-66

Miller, Keith, PhD

University of Wyoming

307/766- 2761 ................................................... 9-28, 9-85

Miller, Nancy, PhD

University of Maryland/Baltimore County

410/455-3889 .................................................... 2-75, 2-76

Mineo Mollica, Beth A., PhD

Center for Applied Science and Engineering

302/651-6836 .................................................... 3-48, 9-37

Miranda, Maria I.

FILIUS Institute

800/496-6035 (V/TTY, from the U.S.); 800/981-

6033 (V/TTY, from Puerto Rico); 787/767-

6035 (V); 787/764-6062 (V); 787/767-

8642 (TTY) ................................................................. 9-72

Mitchell, Helena, PhD

Georgia Centers for Advanced

Telecommunications Technology (GCATT)

404/894-0058 ............................................................... 3-8

Moore, J. Elton, EdD

Mississippi State University

662/325-2001 ............................................................... 1-5

Morford, Ronald A.

Automated Functions, Inc.

703/883-9797 ............................................................. 3-95

Morris, Michael, JD

University of Iowa College of Law

202/521-2930 ............................................................... 1-3

Moss, Kathryn E., PhD

University of North Carolina

919/966-6061 ............................................................. 1-21

Murray, Patrick, MD

Case Western Reserve University

216/778-3901 ............................................................. 2-88

Mwachofi, Ari K., PhD

University of Arkansas/Pine Bluff

870/575-7143 ............................................................. 2-59

Nash, Mark S., PhD

University of Miami

305/243- 3628 ............................................................ 2-15
D-14 Principal Investigators

Nesbit, Julie M.

LATAN

800/270-6185 (V/TTY); 225/925-9500

(V/TTY) ...................................................................... 9-49

Newman, Shelia

CESSI

703/448-6155 (V); 703/448- 3079 (TTY)

..................................................................7-11, 8-32, 8-33

Nieshoff, Edward, MD

Rehabilitation Institute of Michigan

313/745-9733 ............................................................. 2-79

Nisbet, Jan, PhD

University of New Hampshire Technology

Partnership <body>603/862-4320 (V/TTY) .............. 9-60

Novack, Thomas A., PhD

University of Alabama/Birmingham

205/934-3454, or 205/934-3283 ............................... 2-41

Oberstein, Jill S.

Northern Arizona University

800/477-9921 (V); 602/728-9534 (V);

602/728-9536 (TTY) .................................................. 9-32

Odum, Mark X.

HeiTech Services, Inc.

800/346- 2742 (V); 301/459-5984 (TTY);

301/459-5900 (V) ....................................................... 6-18

Orr, Alberta L., MSW

American Foundation for the Blind

212/502-7640 ............................................................. 4-33

Osborne, Joseph

Arlyn Toolworks

717/249-7729 ............................................................. 3-81

Ottenbacher, Kenneth J., PhD

University of Texas Medical Branch

409/747-1637 ............................................................. 8-28

Overmoyer, Richard

Commonwealth of Pennsylvania

717/720-1373 ............................................................. 9-19

Palsbo, Susan E., PhD

National Rehabilitation Hospital/MRI

202/466-1904 ............................................................. 2-17

Parker, Jerry C., PhD

University of Missouri

573/884-1499 ............................................................. 2-10

Parmanto, Bambang, PhD

University of Pittsburgh

412/383-6649 ............................................................. 3-40

Peifer, John

Georgia Centers for Advanced

Telecommunications Technology

(GCATT)

404/894-7028 ............................................................... 3-8

Pelkey, Ralph

Wisconsin Department of Health and

Family Services

608/267-9091 ............................................................. 9-27

Perry, Jacquelin, MD

Rancho Los Amigos

562/401-7177 ............................................................. 2-62

Pickett-Schenk, Susan, PhD

University of Illinois at Chicago

312/422-8180, ext. 17 ................................................ 5-11

Pollard, Robert, PhD

University of Rochester

585/275-3544 ............................................................... 8-4

Power, Stephen

Mississippi Department of Rehabilitation

Services

800/852-8328 (V/TTY, in state only); 601/

987-4872 (V/TTY) ..................................................... 9-55

Powers, Laurie, PhD

University of Kansas

785/864-7605 ...........................................4-15, 4-16, 4-38

Preston, Paul, PhD

Through the Looking Glass

510/848-1112 (V); 800/644-2666 (V);

800/804- 1616 (TTY) ................................................... 6-2

Ragnarsson, Kristian T., MD

Mount Sinai School of Medicine

212/659-9340 ............................................................. 2-35
Principal Investigators D-15

Rahman, Tariq, PhD

Alfred I. duPont Institute of the Nemours

Foundation

302/651-6831 ............................................................. 3-49

Rasinski, Paul

Maryland Governor’s Office for Individuals with

Disabilities

800/832-4827 (800/TECH TAP, V/TTY); 410/554-

9230 (V/TTY) ............................................................. 9-51

Razzano, Lisa A., PhD

University of Illinois at Chicago

312/422-8180, ext. 20 ................................................ 4-20

Reisinger, Kim D., PhD

Center for International Rehabilitation

312/926-0030 ............................................................. 3-16

Restrepo-Toro, Maria, MS

Boston University617/353-3549 ............................... 5-12

Ricketts, Todd A., PhD

Vanderbilt University School of Medicine

615/936-5258 ............................................................. 3-66

Rimmer, James H., PhD

University of Illinois at Chicago

312/413-9651 ............................................................. 3-13

Ringaert, Laurie

North Carolina State University

919/515-8552 ............................................................. 3-23

Rintala, Diana H., PhD

Baylor College of Medicine

713/791-1414, ext. 5807............................................ 8-30

Rock, Elana E., EdD

410/617- 5177 .............................................................. 8-7

Rogers, E. Sally, ScD

Boston University ........................................................ 4-6

Rogers, Joan, PhD

University of Pittsburgh

412/383-6621 ............................................................. 3-65

Rosano-Kazckowski, Lisa

New York State Office of Advocate for Persons with

Disabilities

800/522-4369 (V/TTY/Spanish, in state only);

518/474-2825 (V); 518/473-4231 (TTY) .................. 9-63

Rose, Martha L.

660/785-4057 ............................................................... 8-8

Rosen, Michael, PhD

MedStar Research Institute

202/877-1554 ............................................................... 3-5

Rosenthal, Mitchell, PhD

Kessler Medical Rehabilitation Research

and Education Corporation (KMRREC)

973/243-6971 ............................................................... 6-7

Roth, Elliot J., MD

Rehabilitation Institute Research

Corporation

312/238-4637 ........................................................ 2-7, 2-8

Roush, Daniel

Vcom3D, Inc.

407/737-7310, ext. 115 .............................................. 1-28

Roy, Serge H., ScD

NeuroMuscular Research Center

617/358-0718 ............................................................. 2-78

Russinova, Zlatka, PhD

Boston University

617/353- 3549 ..........................................1-17, 1-19, 8-26

Rymer, W. Zev, MD, PhD

Rehabilitation Institute Research

Corporation

312/238-3919 .................................................... 3-14, 8-21

Sable, Janet, PhD

University of New Hampshire

603/862-3401 ............................................................. 2-83

Sack, Sara H., PhD

University of Kansas Center for

Research, Inc.

620/421-8367 ............................................. 3-55, 9-8, 9-47

Salyers, Michelle P., PhD

Indiana University

317/274-2904 ............................................................. 4-24
D-16 Principal Investigators

Salzer, Mark, PhD

University of Pennsylvania

215/662-2886 ............................................................. 4-11

Sander, Angelle M., MD

The Institute for Rehabilitation and

Research (TIRR)

713/383- 5644 ............................................................ 4-12

Sanford, Jon

Georgia Institute of Technology Center for

Assistive Technology & Environmental Access

404/894-0393 ............................................................... 3-9

Saunders, Jodi L., PhD

319/339-9806 ............................................................. 8-14

Schaefer, Philip

Vortant Technologies, LLC

828/645-1026 ............................................................. 3-80

Schopp, Laura, PhD

University of Missouri

573/882-8847 ............................................................. 4-31

Schroeder, James E., PhD

Applied Human Factors, Inc.

210/408-0098 ............................................................. 4-47

Schultheis, Maria T., PhD

Kessler Medical Rehabilitation Research and

Education Corporation (KMRREC)

973/324-3528 ............................................................. 3-61

Schultz, Mark

Nebraska Assistive Technology Partnership

402/471-0734 .................................................... 9-14, 9-58

Schweik, Susan

University of California

510/642- 4874 (V); 510/549-1865;

510/913-5791 ............................................................. 8-18

Sears, Harold H., PhD

Motion Control, Inc.

801/978-2622; 888/696-2767 .......................... 3-82, 3-94

Seekins, Tom, PhD

University of Montana

406/243- 2654 .............................................................. 1-6

Seiler, Ron

University of Idaho

800/432-8324 (V/TTY); 208/885-

3559 (V/TTY) ............................................................. 9-43

Sheldon, James R. Jr., Esq.

Neighborhood Legal Services, Inc.

716/847-0650 ............................................................. 6-17

Sherer, Mark, PhD

Methodist Rehabilitation Center

601/364-3448 ............................................................. 2-47

Shiflett, Samuel C., PhD

Beth Israel Medical Center

646/935-2244 ............................................................. 2-86

Shivers, Steve

Alabama Department of Rehabilitation Services

800/782-7656 (V, in state only); 334/613-3480 (V);

334/613-3519 (TTY) .................................................. 9-29

Silfies, Sheri P.

215/762-5136 ............................................................. 8-15

Silver-Pacuilla, Heidi

Heidi Silver-Pacuilla

520/206-6500 ............................................................. 8-11

Silverstein, Robert

University of Iowa College of Law

202/521-2930 ............................................................... 1-3

Simon, Helen J., PhD

The Smith-Kettlewell Eye Research Institute

415/345-2071 ............................................................. 3-44

Simon, Sheldon R., MD

Ohio State University Research Foundation

800/784-3425 (V/TTY, in state only); 614/292-

2426 (V/TTY); 614/292-3162 (TTY) ......................... 9-68

Sipski, Marca L., MD

University of Miami

305/243- 8187 ............................................................ 2-29

Smith, Roger O., PhD

University of Wisconsin/Milwaukee

414/229-6803 (V); 414/229-5628 (TTY) .................. 3-42
Principal Investigators D-17

Sohlberg, McKay Moore, PhD

Western Oregon University

541/346-2586 ............................................................. 3-39

Spellman, Charles R., EdD

University of Kansas

800/526-3648 (800/KAN DO IT, in state only);

620/421-8367 (V/TTY) .............................................. 9-47

Sprigle, Stephen H., PhD

Georgia Institute of Technology

404/894-4960 .................................................... 2-67, 3-10

Stapleton, David, PhD

Cornell University

607/255-9536 (V); 607/255-2891 (TTY) .................... 1-7

Steinfeld, Edward, ArchD

State University of New York (SUNY) at

Buffalo

716/829-3485, ext. 327 .............................................. 3-19

Stevens, Jennifer A., PhD

312/238-1235 ............................................................. 8-12

Stika, Carren J., PhD

San Diego State University

619/594-7746 ............................................................. 2-64

Stock, Steven E.

AbleLink Technologies, Inc.

719/592-0347 ...........................................3-74, 4-45, 4-53

Stockford, David Noble

Maine CITE Coordinating Center

207/624-6650 (V); 207/624-6800 (TTY) .................. 9-50

Stodden, Robert, PhD

University of Hawaii at Manoa

808/956-9199) ............................................................. 1-2

Stone, John, PhD

State University of New York (SUNY) at

Buffalo

716/829-3141, ext. 125 ................................................ 6-8

Story, Molly Follette, PhD

North Carolina State University

707/578-6839 (V/TTY) ..................................... 3-30, 6-14

Struchen, Margaret, PhD

The Institute for Rehabilitation and

Research (TIRR)

713/666-9550 .................................................... 2-96, 4-12

Szlachcic, Yaga, MD

Los Amigos Research and Education Institute, Inc.

(LAREI)

562/401-7221 ............................................................. 2-61

Tashjian, Christene A.

RTI International

919/541- 6128 ................................................... 6-20, 9-65

Tate, Denise G., PhD

University of Michigan

734/936-7052 ................................. 2-32, 4-28, 8-23, 8-27

Taylor, Steven J., PhD

Syracuse University

315/443-3851 ............................................................... 6-9

Tos, Edwin

State of Delaware

302/761-8275 ............................................................... 9-2

Tramontina, Michael

Iowa Finance Authority

515/242-4977 ............................................................... 9-7

Tsukamoto, Takuji, PhD

Chemica Technologies, Incorporated

541/385-0355 ........................................................... 2-101

Tucker, Julie

Vermont Department of Aging and

Disabilities

800/750-6355 (V/TTY, in state only);

802/241- 2672 (V/TTY) .................................... 9-22, 9-80

Tulsky, David, PhD

Kessler Medical Rehabilitation

Research and Education

Corporation (KMRREC)

973/243-6849 ............................................................. 2-34

Turnbull, Ann, EdD

University of Kansas

785/864-7600 ........................................................ 5-3, 5-4
D-18 Principal Investigators

Turnbull, H. R., LLM

University of Kansas

785/864-7600 ........................................................ 5-3, 5-4

Usiak, Douglas J.

The Western New York Independent

Living Project, Inc.

716/836-0822 ............................................................... 4-8

Valvano, Joanne, PhD, PT

719/226-0487 ............................................................. 8-17

Vanderheiden, Gregg C., PhD

University of Wisconsin/Madison

608/263-5788 ...........................................3-27, 3-28, 3-29

Vessels, Marian S.

TransCen, Inc.

800/949-4232 (V/TTY, in DC, DE, MD,

PA, VA, and WV); 301/217-0124 (V/TTY) ................... 7-3

Walker, Sylvia, EdD

Howard University

202/806- 8086 ..................................................... 2-6, 4-13

Wallace, Stephen, PhD

San Francisco State University

415/338-6984 ............................................................. 3-43

Ward, Terry, PhD

Florida Department of Education:

Division of Vocational Rehabilitation

850/487-3278 ...................................................... 9-3, 9-39

Warschausky, Seth, PhD

University of Michigan

734/936-7052 ............................................................. 4-27

Waters, Robert L., MD

Los Amigos Research and Education

Institute, Inc. (LAREI)

562/401-7048 ...................................................... 2-26, 3-2

Watson, Douglas, PhD

University of Arkansas/Little Rock

501/686-9691 ...................................................... 1-1, 1-14

Wehman, Paul, PhD

Virginia Commonwealth University

804/828-1851 (V); 804/828-2494 (TTY) .................... 1-8

Wehmeyer, Michael, PhD

University of Kansas

785/864-0723 .................................................... 3-35, 4-15

West, Michael, PhD

Virginia Commonwealth University

804/828-1851 ............................................................. 1-25

Westbrook, John, PhD

Southwest Educational Development

Laboratory

800/266-1832 (V/TTY) ..................................... 6-10, 6-11

Whitall, Jill, PhD

University of Maryland

410/706-0764 ............................................................. 2-77

White, Glen W., PhD

University of Kansas Center for

Research, Inc.

785/864-4095 ........................................................ 4-5, 6-6

Whiteneck, Gale G., PhD

Craig Hospital

303/789- 8204 ..........................................2-28, 2-43, 2-65

Wilkomm, Terese, PhD

University of New Hampshire

Technology Partnership

 603/862-4320 (V/TTY) ............................................. 9-60

Willems, Chris

Three Rivers Holding, LLC

480/833- 1829 ................................................... 3-69, 3-83

Williams, Steve, MD

Boston University Medical Center

Hospital

617/638-7316 ............................................................. 2-31

Wilson, Philip, PhD

Louisiana State University

504/942-8240

504/942-7898 ............................................................. 4-26

Winnegar, Andy

New Mexico Department of Education

505/954-8521 .................................................... 9-15, 9-62

Winters, Jack, PhD

Marquette University

414/288-3375 ............................................................. 3-30
Principal Investigators D-19

Wright, Kevin R.

TTAP

615/532-3122; 800/732- 5059;

615/741-4566 (V/TTY) ..................................... 9-63, 9-76

Wu, Yeongchi, MD

Center for International Rehabilitation

312/926-0030 ............................................................. 3-16

Zafonte, Ross D., DO

University of Pittsburgh

412/648-6979 ............................................................. 2-54

Zhang, Li-Qun, PhD

Rehabilitation Institute of Chicago

312/238-4767 ............................................................. 2-72
Projects by State

Projects by State C-3

Alabama

Alabama Statewide Technology Access and

Response Project (STAR) System for

Alabamians with Disabilities....................... 9-29

National Spinal Cord Injury Statistical

Center............................................................ 6-1

UAB Model Spinal Cord Injury Care

System......................................................... 2-25

UAB TBI Model System ............................ 2-41

Use of Propranolol to Manage Behavioral

Dysfunction and Agitation in Persons with

Postacute Brain Injury ................................. 2-58

Alaska

Assistive Technologies of Alaska................ 9-30

American Samoa

American Samoa Assistive Technology

Service (ASATS) Project ............................ 9-31

Arizona

American Indian Rehabilitation Research

and Training Center ....................................... 5-1

Arizona Technology Access Program

(AzTAP) ..................................................... 9-32

Assistive Technology and Adult Literacy:

Bridging the Gap for Adults with Learning

Disabilities................................................... 8-11

Development of a Collapsible Folding

Manual Wheelchair ..................................... 3-69

Development of Collapsible Folding

Manual Wheelchair - Phase II ..................... 3-83

Arkansas

Absolute Head Pointing for Accessing

Assistive Devices ........................................ 3-70

Absolute Head Tracking for Accessing

Assistive Devices ........................................ 3-84

Arkansas Increasing Capabilities Access

Network (ICAN)......................................... 9-33

Developing a Rehabilitation Service

Delivery Model for Minority Farmers with

Disabilities................................................... 2-59

Reaching Hard of Hearing Workers in the

Mainstream: Implications for Consumers

and Service Professionals............................ 1-14

Rehabilitation Research and Training

Center on Improving Vocational

Rehabilitation Services for Individuals

Who Are Deaf or Hard of Hearing ............... 1-1

California

Advanced Rehabilitation Research

Program: Ed Roberts Fellowship in

Disability Studies ........................................ 8-18

Aging-Related Changes in Impairment for

Persons Living with Physical Disabilities ...... 2-4

Automated Closed Captioning .................... 3-71

California Assistive Technology System

(CATS)........................................................ 9-34

Cardiovascular Disease in Women with

Spinal Cord Injury and Its Effect on

Participation in Community Activities......... 2-61

Community Research for Assistive

Technology ................................................. 3-32

”Cross Watch”: Development of an

Intersection Information System for Blind

Travelers Based on Computer Vision .......... 3-45

Daily Living Context and Pressure Sores in

Consumers with Spinal Cord Injury ............ 2-63

Development and Evaluation of a Quality

of Life Instrument for Individuals with

Adult-Onset Hearing Loss .......................... 2-64

Disability and Rehabilitation Research

Project to Disseminate Independent Living

Research Information Through the Mass

Media to Persons with Disabilities ................ 6-4

Disability Rights and the Independent

Living Movement: The Formative Years

Nationwide .................................................... 5-8

Disability Statistics Rehabilitation Research

and Training Center ....................................... 5-2

Ideas for the New Millennium ....................... 6-3

Improving Muscular Use and CardioRespiratory Demand in Spinal-Cord-Injured

Patients Performing Functional Electronically

Stimulated Leg Cycle Ergonometry ............ 2-60

The Learning and Transfer of Prosthetic

Control ........................................................ 3-43

Manual Wheelchair Utilizing Single Lever

for Propulsion .............................................. 3-72

Model Spinal Cord Injury System ............... 2-27
C-4 Projects by State

National Resource Center for Parents with

Disabilities..................................................... 6-2

Northern California Traumatic Brain Injury

Model System of Care ................................. 2-42

Occupational Therapy Evaluation and

Training Module to Guide Practice with

Pacific ADA & IT Center (Pacific DBTAC)-

Region IX ..................................................... 7-9

Parents with Physical Disabilities................ 4-17

Quantified Custom Inserts: An Amputation

Prevention Program for Diabetic Patients .... 2-62

Regional Spinal Cord Injury Care System

of Southern California ................................. 2-26

Rehabilitation Research and Training

Center in Neuromuscular Diseases ................ 2-1

Rehabilitation Research and Training

Center in Neuromuscular Diseases

(RRTC/NMD)............................................... 2-2

Rehabilitation Research and Training

Center on Aging with a Disability ................. 2-3

Rehabilitation Research and Training

Center on Personal Assistance Services ........ 4-1

RERC on Spinal Cord Injury: Keep Moving:

Technologies to Enhance Mobility and

Function for Individuals with Spinal Cord

Injury ............................................................. 3-2

Smith-Kettlewell Rehabilitation Engineering

Research Center ............................................ 3-3

Sound Localization with Multichannel

Compression Hearing Aids ......................... 3-44

Technologies for Children with Orthopedic

Disabilities..................................................... 3-1

Total Community Immersion Model for

Postsecondary-Age Students with

Significant Disabilities: An Outcome-Based

Approach to Transition................................ 4-18

Wayfinding Technologies for People with

Visual Impairments: Research and

Development of an Integrated Platform ....... 3-31

Colorado

Colorado Assistive Technology Project

(CATP)........................................................ 9-35

Development of an Assistive Technology

Outcomes Measurement System Utilizing the

International Classification of Functioning

(ICIDH-2/ICF) ............................................ 3-46

Disability Law Knowledge Management

System: A One-Stop Clearinghouse for

Disability Information ................................. 6-13

Job Quest, an Internet-based, Self-directed

Career Exploration and Assessment System

For Students and Adults with Significant

Intellectual Disabilities ................................ 3-73

Lifetime Outcomes and Needs: Refining the

Understanding of Aging with Spinal Cord

Injury ........................................................... 2-14

Mortality and Life Expectancy After

Traumatic Brain Injury Rehabilitation ......... 2-65

National Study Of Disability Finance ........... 5-9

Pocket Compass: A Palmtop ComputerBased Intelligent Aid for Individuals with

Mental Retardation to Increase Independence

 and Self-Determination in Decision Making

.................................................................... 4-48

Pocket Voyager: Making Palmtop

Computers Accessible to Individuals with

Mental Retardation ...................................... 4-45

Rocky Mountain Disability Business

Technical Assistance Center - Region VIII ... 7-8

The Rocky Mountain Regional Brain Injury

System (RMRBIS) ..................................... 2- 43

The Rocky Mountain Regional Spinal

Injury System .............................................. 2-28

UCHSC Burn Model System Data

Coordination Center (BMS/DCC) .............. 2-20

WorkRight: A Customizable Software

 System Providing an Interactive Training

 Environment for Social Skills in the

Workplace ................................................... 3-74

Connecticut

Capacity Building through Collaboration

among American Indian Tribes in

Connecticut and Rhode Island ...................... 8-2

Connecticut Assistive Technology Project .. 9-36

Employment Outcomes and Experiences of

College Graduates with Learning

Disabilities..................................................... 8-6
Projects by State C-5

Delaware

Automatic Generation of Optimal Tactile

Graphics...................................................... 3-47

Delaware Assistive Technology Initiative

 (DATI) ....................................................... 9-37

Delaware Assistive Technology Loan

Fund .............................................................. 9-2

Investigation of the Dynamics of Spasticity

in Children with Cerebral Palsy .................. 2-66

A Low Cost, High Resolution Pressure

Mapping System for the Prevention of

Pressure Ulcers.......................................... 2-100

Specifying the Facilitative Effects of

Animation on the Understanding of Action

Word Representatives.................................. 3-48

An Upper Limb Orthosis for People with

Muscular Dystrophy .................................... 3-49

District of Columbia

Access to Rehabilitation and Empowerment

Opportunities for Minority Persons with

Disabilities..................................................... 2-6

The Consortium for Children and Youth

with Disabilities and Special Health Care

Needs. ........................................................... 2-5

Leadership Development: A New

Generation of Effective Leadership ............. 4-13

Rehabilitation Engineering Research

Center on Hearing Enhancement .................. 3-6

Rehabilitation Engineering Research

Center on Telerehabilitation .......................... 3-5

University Legal Services AT Program for

the District of Columbia .............................. 9-38

Florida

The Development of a Tool to Enhance

Communications Between Blind and

Sighted Mathematicians, Students, and

Teachers: A Global Translation Appliance .. 3-50

Development of Virtual Pencil+ Algebra

as a Teaching and Equation Processing

Tool For Blind or Visually Disabled

Students....................................................... 3-75

FAAST Loan Fund Alternative Financing

Program......................................................... 9-3

Florida Alliance for Assistive Service and

Technology (FAAST), Inc. ......................... 9-39

Interdisciplinary Rehabilitation Research

Post-Doctoral Program ................................ 8-19

Pharmacological Management of

Dyslipidemia and Cardiovascular Disease in

Persons with Chronic Cervical SCI: A

Multicenter Collaborative Trial.................... 2-15

RAICES/Promotoras................................... 4-19

Rehabilitation Engineering Research Center

on Technology for Successful Aging ............ 3-7

Rehabilitation Research and Training Center

for Children’s Mental Health ......................... 4-3

Rehabilitation Research and Training Center

on Positive Behavior Support ........................ 4-2

South Florida Regional Spinal Cord Injury

 Model System ............................................ 2-29

Virtual Interview Exercises for Workplace

Success (VIEWS) ....................................... 1-28

Georgia

assitivetech.net - Internet Site on Assistive

Technology ................................................ 6- 16

Credit-Able, Georgia’s Alternative

Financing Program ........................................ 9-4

Development of Valid and Reliable

Measures of Postural Stability ..................... 2-67

Georgia Regional Spinal Cord Injury Care

System......................................................... 2-30

Georgia Tools for Life ................................. 9-40

The Impact of Cognitive Impairment and

Outcomes Following SCI............................ 2-68

Information Technology Technical

Assistance and Training Center (ITTATC).. 3-33

Rehabilitation Engineering Research Center

on Mobile Wireless Technologies for

Persons with Disabilities ............................... 3-8

Rehabilitation Engineering Research Center

on Wheeled Mobility ................................... 3-10

Rehabilitation Engineering Research Center

on Workplace Accommodations ................... 3-9

Southeast Disability Business Technical Assistance Center - Region IV .............................. 7-4

TECH CONNECTIONS: Improving the

Utilization of Existing and Emerging

Rehabilitation Technology in the State

Vocational Rehabilitation Program ................ 6-5
C-6 Projects by State

Guam

Guam Options for Alternative Loans

Assistive Technology (GOAL- AT) .............. 9-5

Guam System for Assistive Technology

(GSAT) ....................................................... 9-41

Hawaii

Assistive Technology Resource Centers of

Hawaii (ATRC)........................................... 9-42

National Center for the Study of

Postsecondary Educational Supports: A

Rehabilitation Research and Training Center 1-2

Idaho

Idaho Assistive Technology Project ............ 9-43

Illinois

Advanced Rehabilitation Research

Training ....................................................... 8-22

Advanced Rehabilitation Research

Training Project in Rehabilitation Services

Research ...................................................... 8-23

An Analysis of the Demography of Living

Standards, Health, and Poverty of Persons

with a Disability Living in Third World

Nations Based on Data from the World

Bank ............................................................ 5-10

Body Mass Index and Disability In Older

Adults: The Health and Retirement Study ... 8-13

Comparison of Two Employment Models

for Consumers with Severe Mental Illness .. 1-15

Cost Effectiveness of a Computerized Oral

Reading Treatment for Aphasia................... 3-52

Development of a Pressure Ulcer Prevention

Beliefs Instrument for Persons with Spinal

Cord Injury .................................................. 2-73

Development of an Intelligent Therapeutic

Stretching Device for Stroke Patients .......... 2-72

Differences in Mental Health Service

Satisfaction Among Clients Interviewed by

Consumer and Non-Consumer Researchers

Using Computer-Assisted Personal Interview

(CAPI) Technology..................................... 5-11

Enabling Self-Determination for People

Living with AIDS ....................................... 4-23

Enhancement of Upper Limb Functional

 Recovery in Stroke Using a ComputerAssisted Training Paradigm......................... 2-69

Great Lakes Disability Business Technical

Assistance Center - Region V ....................... 7-5

Health Services Research DRRP on Medical

Rehabilitation .............................................. 2-16

Illinois Assistive Technology Project

(IATP) ......................................................... 9-44

Integration at Home: Strengthening Family

Relationships of Adults with Disabilities ..... 4-22

LET’S ROLL: Understanding and

Responding to the Needs of People with

Disabilities and the Ticket-To-Work

Program....................................................... 1-16

Motor Imagery Protocol to Improve

Functional Recovery from Hemiparesis in

Stroke Survivors.......................................... 8-12

Moving Out of the Nursing Home and to

the Community: Examining and Effecting

Social Change ............................................. 4-21

Piano Tuning Device for the Blind .............. 1-26

Rehabilitation Engineering Research Center:

Improved Technology Access for Land

Mine Survivors............................................ 3-12

Rehabilitation Engineering Research Center

on Prosthetics and Orthotics........................ 3-11

Rehabilitation Engineering Research Center

on Recreational Technologies and Exercise

Physiology Benefiting Persons with

Disabilities (RERC Rec-Tec) ...................... 3-13

Rehabilitation Engineering Research Center

on Technology Access for Land Mine

Survivors..................................................... 3-16

Rehabilitation Research and Training Center

on Aging with Developmental Disabilities .... 4-4

Rehabilitation Research and Training Center

on Stroke Rehabilitation ................................ 2-7

Rehabilitation Science for Engineers and

Basic Scientists: An Advanced Training

Program....................................................... 8-21

RERC on Rehabilitation Robotics and

Telemanipulation: Machines Assisting

Recovery from Stroke (MARS) .................. 3-14

RRTC on Technology Promoting

Integration for Stroke Survivors:

Overcoming Social Barriers .......................... 2-8
Projects by State C-7

SEAMS: Special Education Administrative

Management System ................................... 4-46

Secondary Prevention Trial of Exercise and

Diet for Improvement of Physical Fitness,

Independence, and Overall Health in Adult

Paraplegics .................................................. 2-71

Selective Dynamic Strength Training to

Enhance Upper Limb Coordination

Following Stroke ......................................... 3-53

The SPIRATE Project (Spinal Injury Risk

Assessment for ThromboEmbolism) ........... 2-70

TechConnect Low Interest Loan Program .... 9-6

Three Dimensional Assessment and

Rehabilitation of Arm Function Following

Stroke .......................................................... 2-74

Tools to Help Web Developers Create more

Universally Accessible Web Resources to

People with Disabilities............................... 3-51

UIC National Research and Training Center

on Psychiatric Disability ................................ 8-1

University of Illinois at Chicago Mental

Health Services Research Program

Medication Adherence Program Study (UICMAPS) ....................................................... 4- 20

Indiana

ATTAIN, Inc. (Assistive Technology

Through Action in Indiana, Incorporated) ... 9-45

Integrating Assertive Community Treatment

(ACT) and Illness Management and

Recovery (IMR) for Clients with Severe

Mental Illness (SMI).................................... 4-24

Iowa

Asset Accumulation And Tax Policy

Project ......................................................... 4-14

Computer Training Materials for Deaf-Blind

Individuals................................................... 3-54

I.T. Works ................................................... 1-11

Iowa AFP and Telework Loan Program ....... 9-7

Iowa Program for Assistive Technology

(IPAT) ......................................................... 9-46

Is Passive Spine Instability a Determinant of

Trunk Motor Control Differences between

Asymptomatic Individuals and Patients with

Chronic Low Back Pain? ............................ 8-15

Model Distance-Learning Computer

Training Program for Blind and Visually

Impaired Individuals.................................... 1-10

Rehabilitation Research and Training Center

on Workforce Investment and Employment

Policy for Persons with Disabilities............... 1-3

Technology for Independence: A CommunityBased Resource Center (TI:CBRC) ............ 3-34

Understanding Ethical Decision-Making and

Behaviors: An Important Prelude to Improved

Service Delivery and Employment Outcomes8-14

Kansas

Assistive Technology for Kansans Project .. 9-47

The Impact of Interventions on SelfDetermination and Adult Outcomes ............ 4-15

Improving Research Information

Dissemination and Utilization to Promote

Independent Living (The RIIL Project) ......... 6-6

Independent Living for People with

Psychiatric Disabilities: Using Contextual

Cues to Remove Environmental Barriers .... 4-25

Kansas Alternative Financing Program and

Telework Program ......................................... 9-8

Mental Retardation and Technology

Disability and Rehabilitation Research

Project ......................................................... 3-35

Rehabilitation Research and Training Center

on Full Participation in Independent Living .. 4-5

Rehabilitation Research and Training Center

on Policies Affecting Families of Children

with Disabilities............................................. 5-3

F:<body>Rehabilitation Research and

Training Center on Policies Affecting

Families of Children with Disabilities ........... 5-4

Reusing AT/DME Acquired Through Public

Funds: Developing a Cost-Neutral,

Consumer-Driven Program ......................... 3-55

Kentucky

Kentucky Assistive Technology Loan

Corporation Alternative Financing

Program......................................................... 9-9

Kentucky Assistive Technology Service

(KATS) Network ........................................ 9-48
C-8 Projects by State

Louisiana

Louisiana Assistive Technology Access

Network (LATAN) ..................................... 9-49

Louisiana Community Housing Advocacy

Network (LA-CHAN) ................................ 4-26

Rehabilitation Research Institute for

Underrepresented Populations (RRIUP) ....... 8-3

Maine

Maine Consumer Information and

Technology Training Exchange (Maine

CITE) .......................................................... 9-50

Maryland

ABLEDATA Database Program ................. 6-19

The Assistive Technology Guaranteed Loan

Program: A Model of Success ..................... 9-10

Bilateral Arm Training in Patients with

Chronic Hemiparesis................................... 2-77

CD-ROM to Teach Cued Speech ............... 3-85

Consumers’ Participation in Nursing Home

Decision-making Preferences and

Perceptions.................................................. 2-75

Development and Testing of LD/LEP

Friendly Computer Textbooks in Diverse

Subjects, Classrooms, and Formats ............. 4-49

Examination of Youth With Concomitant

Emotional, Behavioral, and Learning

Disabilities (C-EBLD): Analyses of

Characteristics, Subtypes, Risk Factors, and

Outcomes ...................................................... 8-7

Increasing States’ Allocations of Medicaid

Dollars to Community-Based Care: Where

Might Policy Intervene? .............................. 2-76

Johns Hopkins University Burn Injury

Rehabilitation Model System (JHUBIRMS) ...................................................... 2-21

Maryland Technology Assistance Program

(MD TAP)................................................... 9-51

Medicaid Quality Indicators for Individuals

with Disabilities........................................... 2-17

Mid-Atlantic Disability Business Technical

Assistance Center - Region III ...................... 7-3

National Rehabilitation Information Center

(NARIC) ..................................................... 6-18

Rehabilitation Research and Training Center

on Secondary Prevention Through Exercise:

 A Participatory Approach for People with

Spinal Cord Injury ......................................... 2-9

StoryTiles: Programmable Manipulatives to

Improve Language, Sequencing, and

Imaginative Play Skills in Children with

Autism......................................................... 3-76

Web-Based Telerehabilitation for Home

Assessment and Monitoring ........................ 3-86

Massachusetts

Access to Digital Cinema Systems .............. 3-58

Access to Digital Television ........................ 3-56

Advanced Research Training Program in

Psychiatric Rehabilitation ............................ 8-26

Beyond the Text: Access to Images, Audio,

and Multimedia in eBooks .......................... 3-57

Development of a High Bandwidth

Individualized Wireless Network ................ 3-77

Development of Methods to Monitor

Functional Tasks ......................................... 2-78

Emergent Disability, Systems Change, and

Employment of People with Disabilities ....... 5-7

An Exploratory Study of the Factors

Determining the Vocational Recovery of

People with Psychiatric Disabilities............. 1-17

Exploratory Study of the Relationship

Between Stigma at the Workplace and the

Vocational Recovery of People with

Psychiatric Disabilities ................................ 1-19

An Integrated Rehabilitation Engineering

Research Training Program ......................... 8-24

Job Retention Factors for Homeless People

with Significant Disabilities......................... 1-18

Massachusetts Assistive Technology Loan

Progam ........................................................ 9-11

Massachusetts Assistive Technology

Partnership .................................................. 9-52

Natural Language Speech Access of

Computers by the Disabled ......................... 3-87

New England ADA Center and Universal

Design in Educational IT (Disability and

Business Technical Assistance Center -

Region I) ....................................................... 7-1

The New England Regional Spinal Cord

Injury Center ............................................... 2-31

Rehabilitation Health Services Research

Fellowship Program .................................... 8-25
Projects by State C-9

Rehabilitation Readiness Tool for Latinos

with Psychiatric Disabilities ........................ 5-12

Rehabilitation Research and Training

Center in Rehabilitation of Persons with

Long-Term Mental Illness ............................. 4-6

Rehabilitation Research and Training Center

on Measuring Rehabilitation Outcomes ........ 5-5

Rehabilitation Research and Training Center

on State Systems and Employment ............... 1-4

The Spaulding/Partners TBI Model System

at Harvard Medical School .......................... 2-44

Web Accessibility Initiative, Phase II ............ 6-6

Word for Word: Developing an Enhanced

Tool for Individuals with Disabilities .......... 3-59

Michigan

Community Participation After Spinal Cord

Injury: Idioms of Beliefs and Behaviors...... 4-29

Functional Assessment and Treatment of

Neurogenic Hypotension Due to Spinal

Cord Injury .................................................. 2-79

Identifying Social Integration Needs During

Transition to Adulthood Following

Traumatic Brain Injury ................................ 4-27

Michigan Assistive Technology Loan

Fund ............................................................ 9-12

Michigan’s Assistive Technology Project ... 9-53

Rehabilitation Engineering Research Center

on Ergonomic Solutions for Employment ... 3-17

Southeastern Michigan Traumatic Brain

Injury System (SEMTBIS).......................... 2-45

Stress and Coping over the Life Course: A

Perspective on Women with Spinal Cord

Injury ........................................................... 4-28

The UMHS/MSU/AACIL Rehabilitation

Research Training Program ......................... 8-23

The UMHS/MSU/AACIL Rehabilitation

Research Training Program ......................... 8-27

University of Michigan Model Spinal Cord

Injury Care System...................................... 2-32

Minnesota

Alternative Funding Mechanism Project ..... 9-13

Cued-Response to Stimulate Saccade-Step

Planning and Mobility in Progressive Supranuclear Palsy ............................................... 3-60

Development of a Career Guidance System

for Students with Disabilities....................... 1-27

Effect of Electrical Stimulation on Brain

Reorganization in Subjects with Stroke ....... 2-80

Home-Based Tracking Training to Stimulate

Neuroplasticity and Improve Function in

Stroke .......................................................... 2-82

Independently Operable Device Mounting

and Positioning Technology for Persons with

Disabilities................................................... 3-78

Mayo Clinic Traumatic Brain Injury Model

System......................................................... 2-46

Minnesota System of Technology to Achieve

Results (STAR) Program ............................ 9-54

National Training Institute for Frontline

Supervisors (NTIFF) ................................... 4-30

Personalized Health Care for Individuals

with Physical Disabilities: Satisfaction with

Services and Outcomes ............................... 2-81

Research and Training Center on

Community Living (RTC/CL) ...................... 4-7

Secondary Analyses of Persons with

Disabilities in the 1994- 1995 Disability

Supplement to the National Health

Interview Survey and in 1999 and 2000

NHIS Surveys............................................. 5-13

Mississippi

Mississippi Project START (Success

Through Assistive/Rehabilitative

Technology) ................................................ 9-55

Persons Aging with Hearing and Vision

Loss............................................................. 1-12

RRTC on Improving Vocational

Rehabilitation Services for Individuals

Who Are Blind or Have Severe Visual

Impairments................................................... 1-5

Traumatic Brain Injury Model System of

Mississippi (TBIMSM) ............................... 2-47

Missouri

Assistive Technology in the Community..... 3-36

Great Plains ADA and Information Technology

Center - Region VII ...................................... 7-7

Missouri Arthritis Rehabilitation Research

and Training Center (MARRTC) ................ 2-10

Missouri Assistive Technology Project ....... 9-56
C-10 Projects by State

Missouri Model Spinal Cord Injury System 2-33

PeerLink: Empowering Persons with

Disabilities to Manage Their Own

Information .................................................. 4-31

Preparing Avenues for Competitive

Employment in Information Technology

(PACE-IT) Project ...................................... 1-13

Shifting Perceptions: Mental Retardation in

Ancient Greece ............................................. 8-8

Montana

MonTECH .................................................. 9-57

Rehabilitation Research and Training Center

on Disability in Rural Communities .............. 1-6

Nebraska

Low Interest Loan Program for the Purchase

of Assistive Technology for Persons with

Disabilities................................................... 9-14

Nebraska Assistive Technology

Partnership .................................................. 9-58

Nevada

Nevada Assistive Technology

Collaborative ............................................... 9-59

New Hampshire

Catecholaminergic Modulation of Working

Memory in Traumatic Brain Injury: An

fMRI Study of the Effects of D2

Dopaminergic and Alpha-2 Adrenergic

Agonistics ................................................... 2-84

New Hampshire Technology Partnership

Project ......................................................... 9-60

Project PATH (Promoting Access,

Transition, and Health) ................................ 2-83

Survey of Home Ownership Nationwide .... 4-32

New Jersey

Advanced Rehabilitation Research Training

Center on Outcomes and Intervention

Effectiveness ............................................... 8-25

Exploiting Residual Functions After

Paralysis ........................................................ 8-9

HARI: The Hand-Arm Rehabilitation

Interface for Training the Hand Following

Paralysis ...................................................... 3-79

JFK-Johnson Rehabilitation Institute TBI

Model System ............................................. 2-48

A Multicenter Prospective Randomized Controlled Trial of the Effectiveness of

Amantadine Hydrochloride in Promoting

Recovery of Function Following Severe

Traumatic Brain Injury ................................ 2-18

New Jersey Assistive Technology Advocacy

Center (ATAC) ............................................ 9-61

Northeast Disability and Business Technical

Assistance Center - Region II ........................ 7-2

Northern New Jersey Spinal Cord Injury

System......................................................... 2-34

Traumatic Brain Injury National Data

Center............................................................ 6-7

The Use of Virtual Reality Technology for

Assessment of Driving Skills Following

Acquired Brain Injury ................................. 3-61

New Mexico

New Mexico Alternative Financing

Program (NMAFP) ..................................... 9-15

New Mexico Technology Assistance

Program (NMTAP) ..................................... 9-62

New York

Acupuncture as an Adjunctive Treatment in

Stroke Rehabilitation ................................... 2-86

Advanced Rehabilitation Research

Training ....................................................... 8-28

Advanced Tissue Vascular and

Biomechanical Studies for Improved

Prosthetic Socket Design ............................. 3-62

Center for International Rehabilitation

Research Information and Exchange

(CIRRIE) ...................................................... 6-8

Development of an Audio/Tactile

Accommodation for Delivery of

Standardized Math Tests to Students Who

 Are Blind or Visually Impaired .................. 3-89

Development of an Audio/Tactile Atlas of

the World for Use by Individuals Who Are

Blind or Visually Impaired .......................... 3-88

Development of an Authoring Tool to

Allow Teachers to Create Audio-Tactile

Materials for Blind and Visually Impaired

Students....................................................... 3-91
Projects by State C-11

Evaluating Independent Living Outcomes

for Blind and Visually Impaired Older

People: Development of a Nationally

Standardized Minimum Dataset (NSMD) ... 4-33

Journal Writing Intervention in Alleviating

Psychological Distress of Korean Mothers

of Children with Developmental

Disabilities................................................... 8-16

A Longitudinal Study of Psychosocial

Outcomes and Subjective Quality of Life

Many Years After Traumatic Brain Injury ... 4-34

Measuring Employer Openness to Hiring

People with Disabilities: Development of

 Expanded Labor Market Survey ................ 1-20

Mount Sinai Spinal Cord Injury Model

System......................................................... 2-35

Muscle Strength, Physical Work Capacity

and Functional Performance in Individuals

with Down Syndrome ................................. 2-87

National Assistive Technology Advocacy

Project ......................................................... 6-17

National Resource Center on Supported

Living and Choice for People with Mental

Retardation and Developmental Disabilities .. 6-9

New York State Technology-Related

Assistance of Individuals with Disabilities

(TRAID) Project ......................................... 9-63

New York Traumatic Brain Injury Model

System (NYTBIMS) ................................... 2-49

Online Instruction Tools for Teaching

Mathematical Problem Solving to Learning

Disabled Students........................................ 3-90

The Practice of a Functional Bimanual Task

By Children With Hemiplegic Cerebral

Palsy ............................................................ 8-17

Randomized Controlled Trial of AntiFatiguing Exercise to Improve Function in

Multiple Sclerosis Patients........................... 2-85

Rehabilitation Engineering and Research

Center (RERC) on Universal Design and the

Built Environment at Buffalo ...................... 3-19

Rehabilitation Engineering Research Center

on Technology Transfer .............................. 3-18

Rehabilitation Engineering Research Center

on Technology Transfer (T2RERC)............ 3-20

Rehabilitation Research and Training Center

for Economic Research on Employment

Policy for Persons with Disabilities............... 1-7

Rehabilitation Research and Training Center

on Demographics and Statistics ..................... 5-6

Rehabilitation Research and Training Center

on Independent Living Management (RRTCILM).............................................................. 4-8

Rehabilitation Research and Training Center

on the Community Integration of Individuals

with Traumatic Brain Injury .......................... 4-9

Toward Equity: Innovative, Collaborative

Research on Interpreter Training, DBT, and

Psychological Testing.................................... 8-4

Utilization and Analysis of Census 2000

Data to Inform Disability Advocacy and

Employment Policy ..................................... 5-14

North Carolina

ABC-Link: A Web-Based Literacy

Assessment Tool for Students with

Significant Disabilities................................. 3-63

Advancing Assistive Technology

Outcomes .................................................... 3-37

Assistive Technology Act (AT Act)

Technical Assistance Program (TA)-Data

Collection Program ..................................... 9-65

Carolinas Traumatic Brain Injury

Rehabilitation and Research System

(CTBIRRS)................................................. 2-50

Exploring Universal Design: Developing

and Disseminating Universal Design

Education Material Online .......................... 6-14

A Feel-Beyond Fingers Device for the

Blind ........................................................... 3-80

North Carolina Assistive Technology

Project ......................................................... 9-64

Rehabilitation Engineering Research Center

on Communication Enhancement ............... 3-21

Rehabilitation Engineering Research Center

on Communication Enhancement ............... 3-22

Rehabilitation Engineering Research Center

(RERC) on Universal Design and the Built

Environment at NCSU ................................ 3-23

Resolving ADA Employment Discrimination

Charges ....................................................... 1-21

Technical Support for Data Collection

Development: Implementation of NIDRR’s

Web-Based Performance Reporting System

Data Collection ........................................... 6-20
C-12 Projects by State

North Dakota

North Dakota Alternative Financial Loan

Program....................................................... 9-16

North Dakota Interagency Program for

Assistive Technology (IPAT) ...................... 9-66

Northern Mariana Islands

Commonwealth of the Northern Mariana

Islands (CNMI) Assistive Technology

Project: System of Technology-Related

Assistance for Individuals with Disabilities

(STRAID) ................................................... 9-67

Trankilu: A Northern Mariana Islands

Alternative Financing Program ................... 9-17

Ohio

Assistive Technology and Cognitive

Disabilities................................................... 3-38

Assistive Technology of Ohio (AT OHIO) . 9-68

Empowering Persons with a Spinal Cord

Injury Through a Shared Decision-Making

Program....................................................... 2-88

Neuropsychological Functioning and

Psychosocial Adjustment in Adolescents

with Spina Bifida and NLD ........................ 4-35

Ohio Regional TBI Model System .............. 2-51

Oklahoma

Development and Distribution of an

Accessible E-Learning Authoring System

Software and Model Course for Vocational

Rehabilitation Services Personnel ............... 1-22

Oklahoma ABLE Tech ............................... 9-69

Oklahoma Alternative Financing Program .. 9-18

Oregon

Community Environmental Assessment

Project: A Multi-Method Approach to

Identify Barriers, Assets, and Engage

Communities for Change ............................ 4-39

Getting A Life: Research on Individual and

Person-Centered Planning Processes in

Oregon ........................................................ 4-36

Healthy Lifestyles Evaluation Project ......... 4-40

Identification and Reporting of Violence By

People with Disabilities............................... 4-16

Information Technology Access for Adults

with Cognitive Disabilities: Participatory

 Development of a Model for Software

Accessibility, Training, and Support............ 3-64

An Innovative Dialysis Regeneration

Cartridge for Portable Hemodialysis ......... 2-101

Men’s Personal Assistance Services Abuse

Research Project.......................................... 4-38

National Center for Accessible Public

Transportation ............................................. 3-24

Northwest ADA/IT Center (Disability

Business Technical Assistance Center -

Region X) ................................................... 7-10

Oregon Technology Access for Life Needs

(TALN) ....................................................... 9-70

Oregon Traumatic Brain Injury Model

System......................................................... 2-52

Rehabilitation Research and Training Center:

Health and Wellness Consortium ................ 2-11

Rehabilitation Research and Training Center

to Improve Services for Children with

Serious Emotional and Behavioral

Disabilities and Their Families .................... 4-10

Resilience in Students with TBI: A

Longitudinal Investigation ........................... 4-37

Think and Link: Email for Individuals with

Cognitive Disabilities .................................. 3-39

Traumatic Brain Injury Rehabilitation: The

Argentina Project ........................................ 2-89

Pennsylvania

Clinical Supervision Within the State-Federal

Vocational Rehabilitation Program: A

Combined Qualitative and Quantitative

Analysis ...................................................... 8-10

Collaboration of Upper Limb Pain in Spinal

Cord Injury .................................................. 2-19

Demonstration of a Model Spinal Cord

Injury System Center................................... 2-36

Developing a Versatile, Affordable,

Wheelchair-Mounted Robotic Arm Based

on the Arlyn FeederBot Design .................. 3-81

The Efficacy of Computer and Sense Wear

Technologies for Promoting Health in

Adults with Fibromyalgia: A Randomized

Clinical Trial................................................ 3-65
Projects by State C-13

GOODFEEL® Braille Music Translator .... 3-93

Information Technology for Independence:

Community-Based Research ....................... 3-40

The Moss Traumatic Brain Injury Model S

ystem ........................................................... 2-53

Naturalistic Action Impairment in Left

Hemisphere Stroke: Cognitive Predictors

and Consequences....................................... 2-91

The Next Generation of Audio-Based

Assistive Technology: An Instantaneous

Customizable Audio Pegging System ......... 3-92

Opening the “Black Box”: The Content and

Process of Learning in Inpatient Traumatic

Brain Injury Rehabilitation .......................... 2-90

Pennsylvania Assistive Technology

 Alternative Financing Program .................. 9-19

Pennsylvania’s Initiative on Assistive

Technology (PIAT) .................................... 9- 71

Rehabilitation Engineering Research Center

on Wheelchair Transportation Safety .......... 3-26

Rehabilitation Engineering Research Center

on Wheeled Mobility ................................... 3-25

Rehabilitation Research and Training Center

on Community Integration of People with

Psychiatric Disabilities ................................ 4-11

Research Training in Rehabilitation Science

with Special Emphasis on Disability Studies 8-29

University of Pittsburgh Brain Injury Model

System (UPBI) ............................................ 2-54

University of Pittsburgh Model Center on

Spinal Cord Injury ....................................... 2-37

Puerto Rico

Puerto Rico Assistive Technology Project .. 9-72

Rhode Island

Rhode Island Assistive Technology Access

Partnership (ATAP) ..................................... 9-73

Shake It Up for Alcohol and Substance Use

Reduction! Health Promotion and Capacity

Building for Persons with Traumatic Spinal

Cord Injuries ............................................... 2-92

South Carolina

Aging After Spinal Cord Injury: Three

Decades of Longitudinal Research .............. 2-93

Risk for Early Mortality After Spinal Cord

Injury ........................................................... 2-94

A Six-Year Longitudinal Study of

Community Integration, Subjective WellBeing, and Health After Spinal Cord Injury:

Relationship with Gender, Race/Ethnicity,

and Environmental Factors.......................... 5-15

South Carolina Assistive Technology Loan

Program (SCAT) ......................................... 9-20

South Carolina Assistive Technology

Program (SCATP) ....................................... 9-74

Stability of Vocational Interests Two Years

after Spinal Cord Injury: Relationship with

Employment, Participation, and Subjective

Well-Being .................................................. 4-41

South Dakota

South Dakota Assistive Technology Project

(DakotaLink)............................................... 9-75

Tennessee

Factors Affecting Directional Hearing Aid

Performance in Children ............................. 3-66

Tennessee Technology Access Project

(TTAP) ........................................................ 9-76

Texas

Advanced Rehabilitation Research

Training ....................................................... 8-30

Assessment of Social Communication

Abilities Following Traumatic Brain Injury. 2-96

Cost Effectiveness Of Rehabilitation

Following Traumatic Brain Injury ............... 2-97

CyberCoach: An Automated System to

Help Integrate Individuals with Memory

Disabilities Into Employment or

Independent Living Settings........................ 4-47

Depression and Rural Women with

Disabilities: Testing a CIL- Based SelfManagement Program ................................. 4-42

Disability Law Resource Project (Southwest

Disability Business Technical Assistance

Center - Region VI) ...................................... 7-6

Effects of Methylphenidate on Working

Memory and Cerebral Glucose Metabolism

in Persons with Severe Traumatic Brain

Injury ........................................................... 2-18
C-14 Projects by State

Health Promotion for Women Aging with

Disability ..................................................... 2-95

Interdisciplinary Rehabilitation Research

Training Program ........................................ 8-28

Minority Scholar/Champion Research

Training Project ............................................. 8-5

Model Spinal Cord Injury Systems

Dissemination Center .................................. 6-12

National Center for the Dissemination of

Disability Research (NCDDR) ................... 6-10

North Texas Burn Rehabilitation Model

System (NTBRMS) .................................... 2-22

North Texas Traumatic Brain Injury Model

System (NT-TBIMS) .................................. 2-55

Pediatric Burn Injury Rehabilitation Model

System......................................................... 2-23

Rehabilitation and Training Center on

Community Integration in Persons With

TBI .............................................................. 4-12

Rehabilitation Research and Training Center

on Rehabilitation Interventions Following

Traumatic Brain Injury ................................ 2-12

Research Utilization Support and Help

(RUSH) Project ........................................... 6-11

Texas Model Spinal Cord Injury System..... 2-38

Texas Technology Access Project ............... 9-77

U.S. Virgin Islands

U.S. Virgin Islands Technology-Related

Assistance for Individuals with Disabilities

(TRAID) ..................................................... 9-78

Utah

Bottom-Up Modeling Of Mass Pedestrian

Flows: Implications for the Effective Egress

of Individuals with Disabilities.................... 3-67

Practical Force-Feedback System for UpperLimb Prosthesis Users ................................. 3-94

Utah Alternative Financing Program ........... 9-21

Utah Assistive Technology Program

(UATP) ....................................................... 9-79

Vermont

Vermont Assistive Technology Project........ 9-80

Vermont Development Ventures Assistive

Technology Loan Fund ............................... 9-22

Virgin Islands

Virgin Islands Alternative Financing

Program....................................................... 9-23

Virginia

Alternative Financing Technical Assistance

Project ......................................................... 9-24

The Braille Power Reader Program ............ 3-68

National ADA Program Assistance

Coordinator ................................................. 7-11

Rehabilitation Research and Training Center

 on Workplace Supports ................................ 1-8

Remote Access Screen Reader Architecture

Math System (RA SRAMS) ........................ 3-95

Self-Employment Development for

Individuals with Traumatic Brain Injury ...... 1-24

Strategies People with Psychiatric

Disabilities Use to Maintain Employment

and Build Careers........................................ 1-23

Technical Assistance Project ......................... 9-1

Technical Support for Assessment of

Management and Ancillary Activities of the

National Institute on Disability and

Rehabilitation Research ............................... 8-33

Technical Support for Computer and Other

Related Activities ........................................ 8-32

Telework as an Accommodation for

Employees with Disabilities: Developing

Prediction Models for Successful and

Satisfying Careers ....................................... 1-25

Traumatic Brain Injury Model System ........ 2-56

VCU Model Spinal Cord Injury Center ...... 2-39

Virginia Alternative Financing Program...... 9-25

Virginia Assistive Technology System

(VATS) ........................................................ 9-81

Washington

ACCESS: Assisted Cognition in

Community, Employment, and Support

Settings........................................................ 3-41

Multi-Family Group Intervention for

Traumatic Brain Injury and Spinal Cord

Injury Patients and Families ........................ 4-43

Multiple Sclerosis Rehabilitation Research

and Training Center ..................................... 2-13

National Center on Accessible Information

Technology in Education ............................ 6-15
Projects by State C-15

Northwest Regional Spinal Cord Injury

System......................................................... 2-40

University of Washington Burn Injury

Rehabilitation Model System ...................... 2-24

University of Washington Traumatic Brain

Injury Model System ................................... 2-57

Washington Assistive Technology Alliance

(WATA)....................................................... 9-82

Washington Assistive Technology

Alternative Financing Project ...................... 9-26

West Virginia

West Virginia Assistive Technology

System (WVATS) ........................................ 9-83

Wisconsin

Advanced Rehabilitation Research Training

for Physicians and Biomedical Engineers ... 8-31

ATOMS Project: Assistive Technology

Outcomes Measurement System ................. 3-42

Enhanced Upper Limb Motor Control by

Reduced Synergistic Muscle Patterns and

Spasticity After Chemodenervation ............. 2-99

Quantitative Study of Anterior and Posterior

Walker Usage Dynamics in Children with

Cerebral Palsy ............................................. 2-98

Rehabilitation Engineering Research Center

on Accessible Medical Instrumentation ....... 3-30

Rehabilitation Engineering Research Center

on Information Technology Access ............. 3-27

Rehabilitation Engineering Research Center

on Telecommunication Access .................... 3-28

Rehabilitation Engineering Research Center

on Universal Interface and Information

Technology Access ..................................... 3-29

Rehabilitation Research and Training Center

on Community Rehabilitation Programs to

Improve Employment Outcomes................... 1-9

WisLoan: Wisconsin’s Alternative

Financing Program ...................................... 9-27

WisTech ...................................................... 9-84

Wyoming

Wyoming’s New Options in Technology

(WYNOT) .................................................. 9-85

Wyoming Technology Access Program ...... 9-28