NIDRR Program Directory

Fiscal Year 2000

NIDRR2000

Produced by The National Rehabilitation Information Center

A project funded by The National Institute on Disability and Rehabilitation Research, project number ED-99-CO-0057.
National Institute on Disability and Rehabilitation Research

Program Directory 2000

Produced by the

National Rehabilitation Information Center

Lanham, MD

Mark X. Odum

Director

Daniel L. Wendling

Media and Public Education Manager

Jessica H. Chaiken

Media Specialist
NARIC

1010 Wayne Avenue, Suite 800

Silver Spring, MD 20910-5633

800/346-2742, 301/562-2400 (Voice),

301/495-5626 (TTY).

http://www.naric.com

The full text of this public domain publication is available at the NARIC’s home page at http://

www.naric.com and in alternate formats upon request. For more information, please contact us at:
Contents

Introduction .....................................................................................................i

Research Priorities

Employment Outcomes ..................................................................................1

Health and Function........................................................................................2

Technology for Access and Function..............................................................3

Independent Living and Community Integration ............................................4

Associated Disability Research Areas ............................................................5

Knowledge Dissemination and Utilization ...................................................6

ADA Technical Assistance Projects ...............................................................7

Capacity Building for Rehabilitation Research Training ..............................8

State Technology Assistance .........................................................................9

Appendices

Subject Index ................................................................................................. A

Grantees ......................................................................................................... B

Projects by State ............................................................................................ C

Principal Investigators ................................................................................... D

Projects by Program Type .............................................................................. E

Introduction 1

Introduction

The mission of the National Institute on Disability and Rehabilitation Research (NIDRR) is to generate, disseminate and promote knowledge that will improve the lives of persons with disabilities in

their communities. NIDRR conducts comprehensive and coordinated programs of research and

related activities to assist in the achievement of the full inclusion, social integration, employment,

and independent living of people with disabilities. This edition of the NIDRR Program Directory lists

all projects funded by NIDRR during the 2000 fiscal year.

NIDRR’s Long-Range Plan, announced in the Federal Register, December 7, 1999 (http://

www.ed.gov/offices/OSERS/NIDRR/#LRP), provides background on NIDRR’s conceptual base. It

describes the “new paradigm of disability,” which posits that disability is an interaction between the

individual and the environment. NIDRR’s research focus includes such areas as: employment outcomes, health and function, technology for access and function, independent living and community

integration, associated disability research areas, knowledge dissemination and utilization, and capacity

building for rehabilitation and international activities. For detailed descriptions of these areas, consult

the Long-Range Plan.

NIDRR’s Research Program

NIDRR’s research is conducted via a network of individual research projects and centers of excellence throughout the country. Most NIDRR grantees are universities or providers of rehabilitation or

related services. NIDRR’s largest funding programs are the Rehabilitation Research and Training

Centers (RRTCs) and Rehabilitation Engineering Research Centers (RERCs). NIDRR also makes

awards for information dissemination and utilization centers and projects, field initiated projects,

research and development projects, advanced research training projects, Mary E. Switzer fellowships

and NIDRR scholars, small business innovative research, and model systems of care. NIDRR also

administers the State Technology Assistance Projects and the Disability and Business Technical Assistance Centers.

Disability and Rehabilitation Research Projects

The Disability and Rehabilitation Research Projects (DRRP) program allows for projects with special

emphasis on research, demonstrations, training, dissemination, utilization, and technical assistance.

Projects may include combinations of these activities. True to the mission of NIDRR, these projects

may develop methods, procedures, and rehabilitation technology to assist in achieving the full inclusion and integration into society, employment, independent living, family support, and economic and

social self-sufficiency of individuals with disabilities, especially individuals with the most significant

disabilities, or to improve the effectiveness of services authorized under the Rehabilitation Act.

Model Systems

NIDRR administers programs that have become world-renowned model systems of care for persons

with spinal cord injuries, burns, and traumatic brain injuries. The Model Systems establish innovative

1
2 Introduction

projects for the delivery, demonstration, and evaluation of comprehensive medical, vocational, and

other rehabilitation services. The work of the Model Systems begins at the point of injury and ends

with successful re-entry into full community life. These projects collect and contribute data on patient

characteristics, diagnoses, causes of injury, interventions, outcomes, and costs to a uniform national

database; participate in collaborative research with other Model System centers; and coordinate research efforts with other related grant recipients.

Advanced Rehabilitation Research Training Projects

The Advanced Rehabilitation Research Training (ARRT) Program (formerly known as the Research

Training Grants Program) expands the capacity of the field of rehabilitation research by providing

advanced training opportunities. These projects provide rehabilitation research training for persons

with clinical or other experience, who may be lacking certain formal research training. Grants are

made to institutions to recruit qualified persons with doctoral or similar advanced degrees with

clinical, management, or basic science research experience, and prepare them to conduct independent

research on problems related to disability and rehabilitation. This research training may integrate

disciplines, teach research methodology in the environmental or new paradigm context, and promote

the capacity for Disability Studies and rehabilitation science. These training programs must operate

in interdisciplinary environments and provide training in rigorous scientific methods.

Rehabilitation Research and Training Centers

NIDRR’s Rehabilitation Research and Training Centers (RRTCs) conduct coordinated and integrated

advanced programs of research targeted toward the production of new knowledge, which may improve rehabilitation methodology and service delivery systems, alleviate or stabilize disabling

conditions, or promote maximum social and economic independence for persons with disabilities.

Operated in collaboration with institutions of higher education or providers of rehabilitation or other

appropriate services, RRTCs serve as centers of national excellence in rehabilitation research. Also,

they are national or regional resources for research information for individuals with disabilities and

the parents, family members, guardians, advocates, or authorized representatives of the individuals.

These centers also conduct related training programs, including graduate, pre-service and in-service

training. The centers also disseminate and promote the utilization of research findings.

Rehabilitation Engineering Research Centers

Rehabilitation Engineering Research Centers (RERCs) conduct programs of advanced research of an

engineering or technical nature designed to apply advanced technology, scientific achievement, and

psychological and social knowledge to solve rehabilitation problems and remove environmental

barriers. Each center is affiliated with one or more institutions of higher education or nonprofit

organizations. The RERCs’ work in a rehabilitation setting provides an environment for cooperative

research and the transfer of rehabilitation technologies into rehabilitation practice. Involved at both

the individual and systems levels, RERCs seek to find and evaluate the newest technologies, products, and methods that ultimately can benefit the independence of persons with disabilities and the

universal design of environments for all people of all ages. The centers also exchange technical and
Introduction 3

engineering information worldwide and improve the distribution of technological devices and equipment to individuals who need them.

State Technology Assistance Projects

This program supports statewide, consumer-driven, technology-related assistance networks for individuals of all ages and disabilities. States and territories are eligible to apply for one grant per entity

which spans a total of ten years of Federal funding. The first phase is a development grant and lasts for

three years. The second phase is known as the first extension and can last for two more years. The

third and final phase is known as the second extension and lasts for five additional years. The Assistive

Technology Act of 1998 (AT Act) authorized three additional years for States that have completed ten

years, at a reduced funding level. Several states have received one-year alternative financing projects

aimed at providing financial assistance in the purchase of assistive technology. Projects work with

public and private lenders in their states.

Fellowships

Fellowships, named for the late Mary E. Switzer, give individual researchers the opportunity to

develop new ideas and gain research experience. There are two levels of fellowships: Distinguished

Fellowships and Merit Fellowships. Distinguished Fellowships go to individuals of doctorate or

comparable academic status, who have had seven or more years of experience relevant to rehabilitation

research. Merit Fellowships are given to persons with rehabilitation research experience, but who do

not meet the qualifications for Distinguished, usually because they are in earlier stages of their careers.

Fellows work for one year on an independent research project of their design.

NIDRR Scholars

The Scholars program attempts to build research capacity by recruiting undergraduates with disabilities

to work in NIDRR-funded Centers and projects and introduces them to disability and rehabilitation

research issues. Scholars gain work experience and receive a small stipend. This program is an innovative approach aimed at generating interest in research careers for persons with disabilities.

ADA Technical Assistance Projects

NIDRR administers a network of grantees to provide information, training, and technical assistance to

businesses and agencies with responsibilities under the Americans with Disabilities Act (ADA). Ten

regional Disability and Business Technical Assistance Centers (DBTACs) are funded to provide

information and referral, technical assistance, public awareness, and training on all aspects of the

ADA. Several National Training Projects target particular groups, organizations, or subject areas for

ADA training and the ADA Technical Assistance coordinator contract assists all of the grantees with

their activities.

Small Business Innovative Research

Small Business Innovative Research (SBIR) grants help support the production of new assistive and

rehabilitation technology. This two-phase program takes a product from development to market readiness.
4 Introduction

NIDRR Contracts

Through its contracts, NIDRR seeks improved methods, systems, products, and practices to add to its

work. The contracts are for specific activities related to management, research, and information dissemination.

NARIC and the NIDRR Program Directory

The Program Directory is compiled by the National Rehabilitation Information Center (NARIC).

NARIC functions as NIDRR’s library, providing the rehabilitation community with information and

referral services to help locate pertinent research related to specific areas of expertise. Since 1977,

NARIC has been the primary source of rehabilitation and disability information generated by

NIDRR funds, with special priority services to NIDRR staff and NIDRR-funded project staff.

NARIC also produces a companion to the Program Directory, which is the Compendium of Products

by NIDRR Grantees and Contractors. Copies of NIDRR-supported research products are received by

NARIC and added to the reference collection and Compendium database. Information about holdings are available online at http://www.naric.com.

Neither NARIC nor NIDRR assumes liability for the Directory’s contents or the use thereof. NARIC

does not evaluate or certify the programs or products of the organizations listed in the Directory.

This Directory is not intended for use as a fiscal document to show how NIDRR funds are allocated;

its purpose is to display the range of programs that NIDRR supports. This listing is current as of

October 1, 2000.

NARIC operates under U.S. Department of Education contract ED-99-CO-0057.
Employment Outcomes

NIDRR seeks to improve employment outcomes for people with disabilities by

funding research into a wide spectrum of employment and disability issues,

including economics; Federal, State, and community employment programs;

accommodation; technology; education; and ergonomics and the work environment.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 1

Disability and Rehabilitation Research Projects .................................................................................. 13

Field-Initiated Projects (FIPs) .............................................................................................................. 15

Small Business Innovative Research SBIR Phase I ............................................................................ 29

Small Business Innovative Research SBIR Phase II ........................................................................... 32

Employment Outcomes 1-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Arkansas

Rehabilitation Research and Training Center for Persons

Who Are Deaf or Hard of Hearing

University of Arkansas

4601 West Markham Street

Little Rock, AR 72205

dwatson@comp.uark.edu

http://www.uark.edu/depts/rehabres

Principal Investigator: Douglas Watson, PhD

Public Contact: 501/686-9691 (V/TTY); Fax: 501/686-9698

Project Number: H133B60002

Start Date: September 30, 1996

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 96 $600,000; FY 97 $600,000; FY 98 $618,963; FY 99 $600,000;

FY 00 $600,000

Other funding: FY 96 $50,000 (Rehabilitation Services Administration); FY 97 $50,000 (RSA);

FY 98 $50,000 (RSA); FY 99 $50,000 (RSA); FY 00 $50,000 (RSA)

Abstract: The Center identifies the employability enhancement needs of the target population, and

discovers basic knowledge about these needs from the perspective of the individual and environment. The Center translates this information into guidelines for change, assessment, and new interventions; evaluates the appropriateness and effectiveness of the new methods; disseminates them to

enhance service delivery; and evaluates their impact and implementation. This project participates in

the NIDRR Scholars program, providing motivated undergraduates with internship experience in

disability research.
1-2 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

California

Research and Training Center For Persons

Who Are Hard of Hearing or Late Deafened

Alliant University Foundation

6160 Cornerstone Court East

San Diego, CA 92121-3725

rrtc@alliant.edu

http://www.hearinghealth.org

Principal Investigator: Raymond J. Trybus, PhD

Public Contact: 858/623-2777, ext. 390 (V); 858/554-1540 (TTY); Fax: 858/552-1975

Project Number: H133B70016

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 98 $499,911; FY 99 $499,911; FY 00 $499,911

Abstract: This Center implements a series of projects involving the impact of hearing loss on

workplace and personal adjustment issues through collaboration with business, professional, and

consumer organizations. The primary target populations are accessed through a network of consumer

organizations, collaborating companies, and service agencies and associations. Project examples

include the identification of factors that have a negative impact on the employment status of people

who are hard of hearing or late deafened. Data sources include affiliations with Veteran’s Affairs

hospitals, local minority communities, and multiple consumer organizations. Interventions include

psycho-educational training sessions with consumers and family members, consultations with businesses, and presentations to key individuals and groups such as labor union officials, employee

assistance counselors, and psychological and public health professionals. Interventions include

“rights training” in relation to the ADA, and focus on assistive technologies. The project provides

workshops for families and employers, establishes support groups for people with cochlear implants,

and creates a family life center project: a “one stop shopping” facility where individuals who are

hard of hearing or late deafened can obtain a variety of interventions, information, and guidance

regarding services and devices. Dissemination includes information on the ADA and Tech Act.

Training targets groups, including employers, consumers, and human resource organizations.
Employment Outcomes 1-3

Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Rehabilitation Research and Training Center on Workforce

Investment and Employment Policy for Persons with Disabilities

Community Options, Inc.

1130 - 17th Street Northwest, Suite 430

Washington, DC 20036

michael.morris@comop.org

http://www.comop.org

Principal Investigator: Michael Morris; Peter Blanck; Michael Collins; Robert Silverstein

Public Contact: Michael Morris, Project Director, 202/721-0120; Fax: 202/721-0124

Project Number: H133B980042

Start Date: November 1, 1998

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $450,000; FY 99 $450,000; FY 00 $450,000

Abstract: This Center helps expand, improve, and modify disability policy and other more general

policies in order to improve the employment status of Americans with disabilities and increase their

independence and self-sufficiency. Based on research from this project and other NIDRR-funded

projects, this project establishes an information and technical assistance resource to government

leaders and decision makers at state and federal levels, individuals with disabilities, parents and

family members, and other interested parties, offering new and revised approaches to workforce

development and employment policy. Studies conducted by this project include: (1) an analysis of

the relationship between select federal and state policies upon the employment of people with disabilities, (2) an analysis of the policy-based implications of outcome-based reimbursement on the

delivery of employment and rehabilitation services to people with disabilities, and (3) an analysis of

the effect of civil rights protections and multiple environmental factors on promoting or depressing

the employment status of people with disabilities. The Center actively seeks to be outcome-focused

and involve individuals with disabilities, parents, and family members in all facets of project activities, including training, research, information dissemination, and technical assistance.
1-4 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Hawaii

National Center for the Study of Postsecondary Educational Supports:

A Rehabilitation Research and Training Center

University of Hawaii at Manoa

Center on Disability Studies—University Affiliated Program

1776 University Avenue/UA4-6

Honolulu, HI 96822

stodden@hawaii.edu; huap@hawaii.edu; cds@hawaii.edu

http://www.rrtc.Hawaii.edu

Principal Investigator: Robert Stodden, PhD, 808/956-9199

Public Contact: Juana Tabali Weir, Administrative Assistant; Valerie Shearer, Pacific Rim AMD

Grants Coordinator, 808/956-3975 (Weir); 808/956-2673 (Shearer); Fax: 808/956-5713

Project Number: H133B980043

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 98 $595,000; FY 99 $605,000; FY 00 $600,000

Abstract: The research this project conducts on educational supports is designed to increase access

to postsecondary education programs and improve outcomes for people with disabilities. The research includes: (1) examining and evaluating the current status of educational supports, including

(a) individual academic accommodations, (b) adaptive equipment, (c) case management and coordination, (d) advocacy, and (e) personal counseling and career advising; (2) identifying effective

support practices and models of delivery that contribute to successful access, performance, and

retention and completion of postsecondary programs; (3) identifying specific barriers to the provision of disability-related services, including policy and funding requirements; (4) assessing the

effectiveness of promising educational practices and disability-related services that are important to

career mobility and success in the workplace; (5) testing the effectiveness of specific models of

delivery that are believed to increase the accessibility of educational supports and innovative technologies; (6) identifying the types of educational and transitional assistance that postsecondary

programs provide to improve educational and subsequent labor market success; (7) providing training, technical assistance, and information to support personnel, public and private rehabilitation

personnel, career placement specialists, and students with disabilities based on the findings and

implications of the research program; and (8) implementing a consumer-driven empowerment

evaluation plan for assessment of the Center’s progress in achieving its goals. Additional goals

include conducting national surveys and field studies within diverse postsecondary educational

settings, and implementing an innovative and integrated training, technical assistance, and dissemination model to ensure the application and sustainability of research-proven policy and practice. This

project participates in the NIDRR Scholars program, providing motivated undergraduates with

internship experience in disability research.
Employment Outcomes 1-5

Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center on

State Systems and Employment

Children’s Hospital

Institute for Community Inclusion

300 Longwood Avenue

Boston, MA 02115

ici@a1.tch.harvard.edu

http://www.childrenshospital.org/ici/rrtc

Principal Investigator: William E. Kiernan, PhD

Public Contact: John Butterworth, PhD, 617/355-7074; Fax: 617/355-7940

Project Number: H133B980037

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000

Abstract: This Center identifies effective practices in coordinated employment efforts and facilitates

such development at local, regional, and state levels. It also influences policy, practice, and perceptions on the national level. Project activities include investigations, technical assistance, and public

policy reviews focused on: (1) examining state service systems, including vocational rehabilitation,

mental health, mental retardation, employment and training service (including one-stop career

centers and welfare-to-work programs), and education to document promising policies and practices

reflecting integrated and coordinated approaches to employment of people with disabilities; (2)

documenting actual employment outcomes for people with disabilities through the analysis of

national, state, and local data collection systems; (3) documenting strategies state agencies use for

overcoming barriers to employment at the state and local levels; (4) examining, documenting, and

disseminating practices at the state level that respond to the employment and support needs of SSI

and SSDI beneficiaries; and (5) reviewing and evaluating strategies and approaches to develop a

more integrated employment approach at the federal and state levels, in order to enhance the employment of people with disabilities.
1-6 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Mississippi

Rehabilitation Research and Training Center

on Blindness and Low Vision

Mississippi State University

P.O. Box 6189

Mississippi State, MS 39762

schaefer@ra.msstate.edu

http://www.blind.msstate.edu

Principal Investigator: J. Elton Moore, EdD

Public Contact: 662/325-2001 (V); 662/325-8693 (TTY); Fax: 662/325-8989

Project Number: H133B60001

Start Date: October 1, 1996

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 96 $600,000; FY 97 $600,000; FY 98 $600,736; FY 99 $600,000;

FY 00 $605,000

Other funding: FY 96 $98,463; FY 98 $194,012 (Rehabilitation Services Administration); FY 99

$26,736 (RSA); FY 00 $50,000 (RSA)

Abstract: The Center conducts a series of research, training, and dissemination projects relating to

blindness and low vision, using a multidisciplinary strategy. The project works to investigate and

document employment status; identify barriers to employment, and techniques and reasonable

accommodations to overcome these barriers; identify training needs in the Business Enterprise

Program; and develop and deliver training programs. Training and dissemination activities include

an information and referral center, national conferences, in-service training and technical assistance,

advanced training for practitioners, advanced training in research, and publication and distribution of

a variety of materials in accessible media. This project participates in the NIDRR Scholars program,

providing motivated undergraduates with internship experience in disability research.
Employment Outcomes 1-7

Rehabilitation Research and Training Centers (RRTCs)

Montana

Rehabilitation Research and Training Center

on Rural Rehabilitation Services

University of Montana

52 Corbin Hall

Missoula, MT 59812-7056

muarid@selway.umt.edu

http://ruralinstitute.umt.edu/rtcrural

Principal Investigator: Tom Seekins, PhD

Public Contact: 888/268-2743 (V, information service only); 406/243-5467 (V/TTY); Rural

Disability Information Network [RUDI] BBS numbers: 406/243-2318; 800/961-9610 (In MT

and WY); Fax: 406/243-2349

Project Number: H133B70017

Start Date: September 1, 1997

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 97 $500,000; FY 98 $550,000; FY 99 $550,000; FY 00 $500,000

Abstract: This RRTC conducts and disseminates research and provides training that improves the

capacity of rural environments to support people with disabilities in living and working independently. Rural Employment and Economic Development Projects concentrate on employment and

vocational rehabilitation service needs, including self-employment as a vocational option for rural

people with disabilities. These project components explore the role of rural economic development

in meeting the needs of people with disabilities, and ways that rural citizens with disabilities can

assume community leadership. Rural Community Development, Independent Living, and Telecommunications components look at how rural independent living services, transportation services,

accessible housing, and telecommunications are funded, and ways to improve rural access to these

services. Health Care projects conduct research to improve access to rural health care services,

including health promotion activities that might reduce the incidence of secondary conditions.

American Indian project components work with American Indian tribes to develop culturally sensitive ways to discuss disability issues, such as ensuring environmental, programmatic, and social

access for tribal members with disabilities; and developing appropriate long-term care options for

elders and people with disabilities or chronic conditions. Methodology: the RRTC approaches its

research areas from a community psychology perspective. Cross-cutting measures of importance

include participation, engagement, and a psychological sense of community. This project participates

in the NIDRR Scholars program, providing motivated undergraduates with internship experience in

disability research.
1-8 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center for Economic

Research on Employment Policy for Persons with Disabilities

Cornell University

Program on Employment and Disability

School of Industrial and Labor Relations

106 ILR Extension Building

Ithaca, NY 14853-3901

smb23@cornell.edu

http://www.ilr.cornell.edu/ped/projects/default.html

Principal Investigator: Susanne Bruyère, PhD; Richard Burkhauser, PhD; David Stapleton, PhD

Public Contact: Susanne Bruyère, PhD, 607/255-7727 (V); 607/255-2891 (TTY); Fax: 607/255-

2763

Project Number: H133B980038

Start Date: December 16, 1998

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000

Abstract: Using principles of economics, this project conducts policy research on how environmental factors influence the work outcomes of people with disabilities. Research also addresses critical

aspects of employment outcomes, recognizing the heterogeneity of people with disabilities, and

explains the importance of interactions among the multiplicity of programs intended to meet the

employment needs of people with disabilities. Components include: (1) a comprehensive analysis,

using existing panel data, of the current employment status of people with disabilities; (2) a longitudinal analysis of the effects of labor market change on the employment and earnings of people with

disabilities; (3) a longitudinal analysis of return-to-work after the onset of a disability; (4) a longitudinal analysis of the impact of civil rights protections on the employment and earnings of people

with disabilities; (5) identification and analysis of policies that foster or impede the participation of

transitioning students in rehabilitation or employment service programs; and (6) analysis of emerging and important issues affecting the employment of people with disabilities. This project participates in the NIDRR Scholars program, providing motivated undergraduates with internship experience in disability research.
Employment Outcomes 1-9

Rehabilitation Research and Training Centers (RRTCs)

Ohio

Rehabilitation Research and Training Center on Drugs and Disability

Wright State University

School of Medicine

Substance Abuse Resources and Disability Issues (SARDI)

P.O. Box 927

Dayton, OH 45401-0927

sardi@wright.edu

http://www.med.wright.edu/SOM/SARDI

Principal Investigator: Dennis C. Moore, EdD

Public Contact: Jo Ann Ford, 937/259-1384 (V/TTY); Fax: 937/259-1395

Project Number: H133B70018

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 97 $499,369; FY 98 $602,294; FY 99 $602,294; FY 00 $603,663

Abstract: This project conducts epidemiological and evaluative studies of substance abuse and

substance abuse services for consumers of state vocational rehabilitation (VR) programs. Activities

address substance abuse as it co-exists with other disabilities; all components of the RRTC are

designed to interrelate and synergistically build on each other. The research components include

longitudinal and multisite studies to address more advanced research questions, and quantitative/

qualitative methods to investigate vocational rehabilitation issues for people with HIV. The training

components use a variety of materials, venues, and trainers in order to address needs within pre- and

in-service populations. Training and dissemination components also include extensive use of distance learning media, especially use of the Internet to provide professionals and consumers with

timely and relevant information. Stakeholders’ concerns and interests are addressed by several

mechanisms, including a formal subcontract with the National Association on Alcohol, Drugs, and

Disability. This project is one component of a number of state and federally funded entities in the

SARDI (Substance Abuse Resources & Disability Issues) Center. Multiple collaborations are delineated with federal agencies, including the Substance Abuse and Mental Health Services Administration, as well as professional and consumer organizations, national clearinghouses, other RRTCs, and

institutions of higher education.
1-10 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Pennsylvania

The MRI/Penn Training Center on Vocational Rehabilitation

Services for Persons with Long-Term Mental Illness

Matrix Research Institute

100 North 17th Street, 10th Floor

Philadelphia, PA 19103

workmri@aol.com

http://www.matrixresearch.org

Principal Investigator: Donald J. Dellario, PhD; Trevor Hadley, PhD

Public Contact: Donald J. Dellario, PhD, 215/569-2240 (V); 215/569-8098 (TTY); Fax: 215/569-

2806

Project Number: H133B70007

Start Date: June 5, 1997

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 97 $500,000; FY 98 $500,000; FY 99 $500,000; FY 00 $500,000

Abstract: This RRTC focuses on four research areas: (1) improving the work incentives of the

Social Security system, (2) linking client characteristics and program design to client outcomes, (3)

exploring employer/employee relationships, and (4) examining vocational rehabilitation’s relationship to behavioral managed care systems. It also focuses on four training issues: (1) improving

rehabilitation research skills; (2) developing mental health/vocational rehabilitation curricula for

human services, social work, and nursing; (3) assessing training methodologies in the field; and (4)

expanding on-line dissemination to the field.
Employment Outcomes 1-11

Rehabilitation Research and Training Centers (RRTCs)

Virginia

Rehabilitation Research and Training Center on Workplace Supports

Virginia Commonwealth University

Rehabilitation Research and Training Center on Workplace Supports

1314 West Main Street, Box 842011

Richmond, VA 23284-2011

tcblanke@saturn.vcu.edu

http://www.worksupport.com

Principal Investigator: Paul Wehman, PhD

Public Contact: Valerie Brooke, Associate Director, 804/828-1851 (V); 804/828-2494 (TTY); Fax:

804/828-2193

Project Number: H133B980036

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 98 $699,992; FY 99 $699,992; FY 00 $699,992

Abstract: This Center helps to increase the national employment rate among people with disabilities

by identifying factors in the work environment that inhibit or enhance employment outcomes and by

sharing the results with the business community. Researchers: (1) analyze existing or new financial

incentives to find those that encourage enterprises to hire or retrain workers with disabilities; (2)

measure the effectiveness of disability management and return-to-work strategies; (3) assess employers’ need for information, training, and resources; (4) conduct, in business settings, interventions that

respond to employer needs; (5) analyze the interventions to determine their effectiveness; (6) determine the impact of changes in work structures such as telecommuting and self-employment on the

employment outcomes of people with disabilities. Stakeholders who benefit from these research,

training, technical assistance, and dissemination efforts include business personnel; rehabilitation

service personnel; federal and state policy-makers; people with disabilities; their guardians, advocates, and authorized representatives; students; and the general public.
1-12 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Wisconsin

Rehabilitation Research and Training Center on Community

Rehabilitation Programs to Improve Employment Outcomes

University of Wisconsin/Stout

Stout Vocational Rehabilitation Institute

College of Human Development

214 Tenth Avenue

Menomonie, WI 54751

rtc@uwstout.edu

http://www.rtc.uwstout.edu

Principal Investigator: Fredrick E. Menz, PhD

Public Contact: 715/232-2236 (V); 715/232-5025 (TTY); Fax: 715/232-2251

Project Number: H133B980040

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000

Abstract: This project engages community-based rehabilitation programs (CRPs) and state rehabilitation programs in an effort to open multiple funding sources for rehabilitation and habilitation

services and employment opportunities for people with disabilities. The project includes a series of

interrelated studies directed toward changing outcomes and determining CRP capacities to affect

economic status of people with disabilities in their communities and develops a complementary

methodology for achieving utilization and application of the new knowledge. Primary research tasks:

(1) examining how CRPs are serving people with disabilities from alternate sources of funding; (2)

determining the extent to which consumers pursue and receive services, compared to the intentions

of the Rehabilitation Act; (3) exploring what funding, service, and strategy capacities exist to address those intentions more coherently at the community-level; (4) devising and demonstrating

practice-program alternatives that materially improve outcomes from CRPs; and (5) clarifying how

CRPs as an industry can be better enjoined as a complementary resource to improve the economic

and community integration status of people with disabilities. The project establishes a publicly

accessible national database of core information on CRP programs, and includes training, technical

assistance, and dissemination activities.
Employment Outcomes 1-13

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

Working It Out Together: Women with Disabilities and Employment

Children’s Hospital

Institute for Community Inclusion

300 Longwood Avenue

Boston, MA 02115

foley_s@a1.tch.harvard.edu

http://www.childrenshospital.org/ici

Principal Investigator: Judith Palfrey, MD; Susan Foley, PhD, 617/355-6714 (Palfrey); 617/355-

2075 (Foley)

Public Contact: Susan Foley, 617/355-2075; Fax: 617/355-7940

Project Number: H133A990019

Start Date: November 1, 1999

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $199,861; FY 00 $199,828

Abstract: This study explores the experience of working women with disabilities to find out what

workplace supports have been the most beneficial, what obstacles remain, and how peer support and

mentoring fit into the basket of supports. This project provides a national picture of women with

disabilities’ use of income supports, public services, and employment outcomes. It also provides the

perspective of 200 working women with disabilities about what workplace supports have been most

beneficial and what needs remain. Findings from these two studies give a snapshot of the critical

needs of working women with disabilities. The project also develops mentorship and peer support

strategies that can be used by other women with disabilities, service providers, and researchers.

These two strategies have the potential to improve the economic status of working women with

disabilities.
1-14 Employment Outcomes

Disability and Rehabilitation Research Projects

New York

A Four-Year Research and Demonstration Project to Address Ways to

Improve the Employment Practices Covered by Title I of the

Americans with Disabilities Act (ADA)

Cornell University

106 ILR Extension Building

Ithaca, NY 14853-3901

smb23@cornell.edu

http://www.ilr.cornell.edu/ped

Principal Investigator: Susanne Bruyère, PhD, 607/255-7727 (V)

Public Contact: Deborah Fisher, 607/255-3079 (V); 607/255-2891 (TTY); Fax: 607/255-2763

Project Number: H133A70005

Start Date: October 1, 1997

Length: 48 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 97 $249,958; FY 98 $249,804; FY 99 $249,804; FY 00 $249,855

Abstract: This project addresses ways to improve the employment practices covered by Title I of the

ADA. The purpose of this effort is to investigate the impact of the ADA on the employment practices

of private sector small, medium, and large businesses. The intended outcome is to assist in the

identification of employment practices that have been the most challenging in implementing the

ADA, and to identify interventions that can be used by private sector employers and people with

disabilities to address these challenging employment practices. Employment policy and practices

that enhance both the hiring and retention of workers with disabilities are examined. A representative

sample of small, medium, and large private sector employers was selected for study from the membership of the Washington Business Group on Health and the Society for Human Resources Management. A survey was conducted of almost 1,000 private-sector employers and the results have been

used to identify specific interventions to address remaining barriers. The study is conducted in

collaboration with the Washington Business Group on Health, the Society for Human Resource

Management, and The Lewin Group.
Employment Outcomes 1-15

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

District of Columbia

Policy Barriers for People with Long Term Mental Illness

Who Want to Work

National Rehabilitation Hospital Research Center

Medstar Research Institute

108 Irving Street Northwest, Annex 5

Washington, DC 20010-2949

boday@netcom.com

http://www.nrhrc.org

Principal Investigator: Gerben DeJong, PhD, 202/466-1900

Public Contact: Bonnie O’Day, 703/379-4289

Project Number: H133G80031

Start Date: May 1, 1998

Length: 36 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 98 $124,996; FY 99 $124,923; FY 00 $125,043

Abstract: This project uses the personal experiences of people with long-term mental illness (LTMI)

to identify policies and implementation strategies within the public assistance system that either

promote work or create barriers to work for this population. The project has the following objectives:

(1) to determine whether programs and policies constitute barriers to employment among working

and nonworking people with LTMI and how participants in this sample experience the identified

barriers; (2) to determine whether and how a small sample of workers with LTMI use existing work

incentives and other programs to maintain employment; (3) to determine what perceived policy and

programmatic barriers to employment identified in Phase I are present a year later in the same

sample, and whether they systematically vary by socioeconomic status, gender, race, age, or other

sociodemographic characteristics; (4) to provide an in-depth description of the impact of perceived

policy and programmatic barriers and options on the employment histories of four workers and four

nonworkers with LTMI; and (5) to recommend policies and implementation strategies that promote

work among the LTMI population, and to disseminate the information. Dr. DeJong can be reached at

the NRH Center for Health and Disability Research, 1016 - 16th Street NW, Suite 460, Washington,

DC 20036.
1-16 Employment Outcomes

Field-Initiated Projects (FIPs)

District of Columbia

Development of an Individualized Marketing Strategy for Job

Development for People with Severe Disabilities

United Cerebral Palsy Associations, Inc.

1660 L Street Northwest, Suite 700

Washington, DC 20036-5602

http://www.ucpa.org

Principal Investigator: Susan Finestra

Public Contact: 217/787-7639; Fax: 217/787-0966

Project Number: H133G80030

Start Date: June 15, 1998

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $123,878; FY 99 $124,989; FY 00 $124,076

Abstract: This project develops an Individualized Employment Portfolio and a training manual that

helps people with severe and multiple disabilities, including physical and communication disabilities, to secure employment. The product increases their functional capability for individualized

representation with potential employers, as well as by employment representatives as appropriate.

The project surveys and field-tests the materials with employers, and then modifies and finalizes the

product.
Employment Outcomes 1-17

Field-Initiated Projects (FIPs)

Georgia

Development and Dissemination of a Questionnaire and Method

to Evaluate Customer Satisfaction with Rehabilitation

University of Georgia

402 Aderhold Hall

Athens, GA 30602

apatrick@coe.uga.edu

http://www.coe.uga.edu/hsmi

Principal Investigator: Adele Patrick

Public Contact: Phil Chase, 706/542-1812; Fax: 706/542-4130

Project Number: H133G80023

Start Date: October 1, 1998

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $125,000; FY 99 $125,000; FY 00 $125,000

Abstract: This project develops a short, uncomplicated consumer satisfaction survey instrument to

be administered by rehabilitation programs. Maximizing satisfaction with rehabilitation services

should allow more consumers to reach employment and other important goals, and should reduce the

number of consumers who drop out. The project: (1) develops an instrument and methodology for

the collection of data regarding consumer satisfaction with services provided by the state and federal

rehabilitation agencies, and (2) disseminates information about the use of the instrument and analysis

of the data provided by the instrument. When instrument development is completed, it is validated

by soliciting input from focus groups. Then revisions are made and the instrument is pilot tested. The

project produces a survey methodology designed to generate the highest possible response rate in

order to assure that the rehabilitation agency is getting an accurate assessment of satisfaction. Ongoing information about the service delivery system should include data regarding satisfaction so that

service delivery can be improved and priorities can be managed.
1-18 Employment Outcomes

Field Initiated Projects (FIPs)

Illinois

Comparison of Two Employment Models for Consumers

with Severe Mental Illness

The Thresholds

4101 North Ravenswood Avenue

Chicago, IL 60613

taffy@thresholds.org

Principal Investigator: Taffy (M.L.) McCoy, PhD

Public Contact: 773/880-6260, ext. 230; Fax: 773/880-5755

Project Number: H133G90155

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $150,000; FY 00 $150,000

Abstract: This project conducts a randomized controlled trial comparing supported employment

with well-established, comprehensive psychiatric rehabilitation approaches. It also investigates

interactions between consumer characteristics and employment approaches, toward an understanding

of the best vocational rehabilitation strategies for people of color, especially people from the African

American community. This study compares the effectiveness of two important, popular employment

models for people with Severe Mental Illness (SMI). The Diversified Placement Approach (DPA)

offers a gradual, stepwise preparation for competitive employment, including prevocational training,

agency-run business opportunities, group placements, individual placements, and ultimately movement into independent employment, all available on a flexible, individualized basis without fixed

time limits. The second model is a supported employment model developed in New Hampshire,

known as Individual Placement and Support (IPS). IPS is a supported employment approach for

individuals with SMI. As a consumer-oriented approach, key features of the IPS model include

individualized planning with careful attention to consumer preferences in the job matching process,

close coordination between rehabilitation and treatment, and rapid job search.
Employment Outcomes 1-19

Field-Initiated Projects (FIPs)

Massachusetts

Exploratory Study of the Relationship Between Sustained Employment

and Psychosocial Adjustment of People with Psychiatric Disabilities

Boston University

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue West

Boston, MA 02215

zlatka@bu.edu

http://www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133G80124

Start Date: July 1, 1998

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $124,998; FY 99 $125,000; FY 00 $125,000

Abstract: This project studies the relationship between successful employment of people with

psychiatric disabilities and their overall level of psychosocial adjustment. In this study the concept of

psychosocial adjustment is related to the concept of recovery, described as a unique process of

changing one’s attitudes, values, feelings, goals, skills, and roles. In this way, recovery is conceptualized as the core of the process of psychosocial adjustment, since it involves the internal restructuring

of the person and is expected to lead not only to the person’s adaptation to the illness but also to a

significant improvement and a qualitatively different functioning of the person. From this perspective, this study explores the relationship of sustained competitive employment to consumers’ psychosocial functioning. The relationship of consumers’ vocational and psychosocial functioning over

time is explored as well.
1-20 Employment Outcomes

Field-Initiated Projects (FIPs)

Montana

The Self-Employment Experience: Learning About Entrepreneurs

with Disabilities to Build Models for Improving

Self-Employment Outcomes

University of Montana

Rural Institute on Disabilities

52 Corbin Hall

Missoula, MT 59812

nancy@selway.umt.edu

http://ruralinstitute.umt.edu

Principal Investigator: Nancy Arnold, PhD; Tom Seekins, PhD, 406/243-2469

Public Contact: Nancy Arnold, PhD, 800/268-2743; 406/243-2469; Fax: 406/243-2349

Project Number: H133G70064

Start Date: August 1, 1997

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 97 $120,822; FY 98 $124,990; FY 99 $124,492; FY 00 (No-cost extension

through 7/31/01)

Abstract: This project examines self-employment experiences of people with disabilities. While

self-employment is a growing national trend for people without disabilities, it is generally considered

a less-than-optimal outcome for consumers of vocational rehabilitation (VR) services and is seldom

pursued. Survey respondents are sampled from two sources. First, state VR agencies with high

percentages of self-employment closures are solicited to participate by providing access to consumers they have assisted in starting businesses. Second, the Disabled Businesspersons Association

(DBA) is solicited to provide access to members who have achieved self-employment without the

assistance of a VR agency. Project goals include: (1) providing a clearer understanding of selfemployment for people with disabilities, (2) encouraging development of new policies and procedures, and (3) providing future entrepreneurs with disabilities and support agencies with recommendations for improved practice. Researchers also develop profiles of self-employed individuals with

disabilities and recommend changes to VR practices that promote self-employment as a viable

service outcome.
Employment Outcomes 1-21

Field-Initiated Projects (FIPs)

Montana

Self-Employment Technology Transfer (SETT)

University of Montana

Rural Institute on Disability

52 Corbin Hall

Missoula, MT 59812

nancy@selway.umt.edu

http://ruralinstitute.umt.edu

Principal Investigator: Nancy Arnold, PhD

Public Contact: 406/243-2469; Fax: 406/243-2349

Project Number: H133G000189

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $149,970

Abstract: The Self-Employment Technology Transfer (SETT) project has developed and field tested

a vocational rehabilitation (VR) self-employment support model based on extensive research. This

project is designed to develop, demonstrate, and evaluate methods for facilitating the widespread

adoption by practicing VR counselors of this empirically derived model of standards and practices in

a cost-effective manner and in a relatively short time. It is estimated that achieving this goal benefits

25,560 to 62,850 consumers of VR services annually. Further it is believed that such a technology

transfer model for disseminating empirically derived social technology from research into practice

has the potential to shape the content, methods, and goals of future disability and rehabilitation

research. There has been an explosion of interest in self-employment for people with disabilities.

Over a half-million people with disabilities report owning their own businesses and people with

disabilities are nearly twice as likely to be self-employed as those in the general population. While

self-employment is not for everyone, it clearly is a viable option used by many. Yet, Vocational

Rehabilitation (VR) agencies nationally help fewer than 2.5 percent of their consumer achieve selfemployment. Research shows that few of the estimated 9,500 practicing VR counselors have the

knowledge or skills to support consumers who choose to pursue self-employment. Anecdotal reports

indicate that VR agencies and staff have a significant interest in developing methods to respond to

this consumer demand. While a few programs have served as models for promoting self-employment, none are designed specifically for VR counselors or organized for such wide-scale dissemination.
1-22 Employment Outcomes

Field-Initiated Projects (FIPs)

New York

Medication Management and Successful Work Transition

in Persons with HIV/AIDS

Center for Essential Management Services

4210 Jericho Turnpike, Suite 300

Jericho, NY 11753

cems1@prodigy.net

Principal Investigator: David Vandergoot, PhD

Public Contact: 516/827-5960; Fax: 516/938-9477

Project Number: H133G000195

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $149,998

Abstract: This project conducts survey research and a series of focus groups with graduates of a

comprehensive vocational rehabilitation program. The purpose is to identify effective strategies used

by persons with HIV/AIDS for managing combination antiretroviral medications in the workplace.

Men and women with HIV/AIDS are a population from the new universe of disability; many are

from ethnically diverse backgrounds and are economically disadvantaged. Within this population

NIDRR-funded research has found a high frequency of hidden traumatic brain injury and a strong

correlation between health and employment. The information gleaned from the survey research and

focus groups, as well as other research on how people with HIV/AIDS can maintain their health, is

used to create rehabilitation interventions for people with HIV/AIDS to enter the labor market and

sustain employment. Medication management is conceptualized in its broadest sense to include

adherence to prescribed treatment protocols, management of medication side effects and other HIV/

AIDS-related symptoms while balancing daily life roles, routines, activities, expectations, and

demands. The effectiveness of these rehabilitation interventions will be evaluated in the context of a

community-based employment agency in New York City—Mobilizing Talents and Skills (MTS)—

that serves men and women with HIV/AIDS from ethnically diverse backgrounds. The interventions

are expected to enhance the vocational rehabilitation services provided by MTS and combine a series

of psycho-educational groups with individualized service coordination and counseling.
Employment Outcomes 1-23

Field-Initiated Projects (FIPs)

New York

Measuring Employer Openness to Hiring People with Disabilities:

Development of Expanded Labor Market Survey

Syracuse University

Counseling and Human Services

257 Huntington Hall

Syracuse, NY 13244-2340

ddgilbri@syr.edu

http://soeweb.syr.edu/faculty/ddgilbri/nidrr

Principal Investigator: Dennis Gilbride, PhD

Public Contact: 315/443-5264; Fax: 315/443-5732

Project Number: H133G000028

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 00 $149,306

Abstract: This project works to understand the labor market in regards to people with disabilities.

The first goal is to identify the key factors that distinguish employers that are authentically open to

people with disabilities throughout the human resource management process, including recruitment,

selection, training, supervision, accommodation, and promotion. The second goal is to develop a

simple interview protocol (and supportive training materials) that rehabilitation consumers and

counselors can use as part of an enhanced labor market survey to target employers for placement,

employer development, and consulting efforts based upon that employer’s level of openness. Five

objectives help to achieve these goals: (1) develop and convene a consumer advisory panel; (2)

conduct focus groups and interviews with employers in key labor markets; (3) analyze the data to

identify key components of openness; (4) present the data to a consumer advisory panel and a practitioner panel to help develop enhanced labor market survey questions, protocols, and training materials; and (5) disseminate the project results to consumers, practitioners, educators, and employees.

Consumers and rehabilitation professionals can use the enhanced labor market survey to understand

the openness of employers. The Web and CD-ROM versions of the labor market survey illustrate the

key aspects of employer openness with Quicktime movies of employer statements.
1-24 Employment Outcomes

Field-Initiated Projects (FIPs)

North Carolina

Resolving ADA Employment Discrimination Charges

University of North Carolina

The Cecil G. Sheps Center for Health Services Research

725 Airport Road, CB #7590

Chapel Hill, NC 27599-7590

kathyrn_moss@unc.edu

Principal Investigator: Kathryn E. Moss, PhD

Public Contact: 919/966-6061; Fax: 919/966-3811

Project Number: H133G000132

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 00 $149,925

Abstract: The project’s purpose is to assess the impact of the ADA employment discrimination

service system on the lives of people with disabilities, using data from the computerized charge data

system of the U.S. Equal Employment Opportunity Commission (EEOC). Under Title I of the

Americans with Disabilities Act (ADA), individuals who believe they have been discriminated

against in employment on the basis of a disability may file an administrative charge with either the

EEOC or a state or local Fair Employment Practice Agency (FEPA). During the statute’s first decade

of operation, the EEOC and the FEPAs have become a significant service system for people with

disabilities, handling an average of 30,000 Title I claims each year. Recently, landmark Supreme

Court decisions interpreting the ADA, the EEOC’s implementation of a new charge processing

policy, and their ambitious new mediation program have significantly changed the Title I charge

process and considerably altered the landscape in which EEOC offices and FEPAs process Title I

charges. The aims of the project, therefore, are as follows: (1) to monitor the evolving implementation of Title I of the ADA by the EEOC and the FEPAs, (2) to monitor the evolving implementation

of the EEOC’s new mediation program, and (3) to design and disseminate useful and accessible

information about the Title I charge process for people with disabilities and persons who support

them.
Employment Outcomes 1-25

Field-Initiated Projects (FIPs)

Ohio

Variables Associated with Vocational Success Among Persons

with Severe Mental Illness: An Empirical Study

Cleveland State University

Department of Social Work

2300 Chester Avenue

Cleveland, OH 44115

m.smith@csuohio.edu

http://www.csuohio.edu

Principal Investigator: Mieko Kotake Smith, PhD

Public Contact: 216/687-4738; Fax: 216/687-5590

Project Number: H133G990036

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 99 $138,332; FY 00 $141,462

Abstract: This project (1) examines the relationships between several variables and vocational

success among people with severe and persistent mental illness; and (2) develops a model of how

those variables together lead to vocational success in this population. Many attempts have been

made to identify factors associated with vocational success among people with severe mental illness,

but no comprehensive portrait of these factors has been developed. The study is carried out at a

community employment collaborative among three community-based rehabilitation service agencies

in Cleveland Ohio that provides a range of vocational services to individuals with severe and persistent mental illness. This study uses a longitudinal design with three data collection points to follow

approximately 300 individuals receiving vocational training; the variables to be examined are in

three areas: personal factors, work environment factors, and other factors. Personal factors include

social functioning, symptomatology, symptom management, and expectations to succeed. Work

environment factors include the employers’ knowledge about mental illness, the work environment,

and pay. Other factors include the fit between employee interests and the actual job, and social

networks.
1-26 Employment Outcomes

Field-Initiated Projects (FIPs)

Pennsylvania

Functional Assessment in Rehabilitation Software

Conversion (FAIR/SC)

Jewish Employment and Vocational Service

Vocational Research Institute

1700 Harris Road

Laverock, PA 19038

fairstarhd@earthlink.net

Principal Investigator: Howard Dansky

Public Contact: 215/836-2809; Fax: 215/836-2819

Project Number: H133G80099

Start Date: September 1, 1998

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 98 $124,952; FY 99 $124,904; FY 00 $124,952

Abstract: This project develops, field tests, and produces an innovative computer-based software

system to improve the effectiveness of employment programs for people with cognitive disabilities.

This new software uses new vocational assessment technology developed and tested over a threeyear period. The project’s objectives: (1) to design a software version of the FAIR assessment model,

which will guide supported employment practitioners in working with consumers in structured

community-based situational assessment experiences; (2) to recruit service providers as partners and

conduct user focus groups at field sites, and integrate results of testing several hardware and software

configurations; (3) to perform parallel, interrelated activities and continual quality assurance to test

for adherence to written specifications; (4) to design refinements and improvements during one-year

field tests of use by supported employment practitioners and service recipients; (5) to write user

documentation; (6) to perform more field tests at various sites; (7) to evaluate effectiveness, review

and assimilate user feedback; and (8) to refine, write final user guides and documentation, and

publish the application.
Employment Outcomes 1-27

Field-Initiated Projects (FIPs)

Pennsylvania

Testing the Effectiveness of School-to-Work Transition Services

 for Youth with Serious Emotional Disturbances

Matrix Research Institute

6008 Wayne Avenue

Philadelphia, PA 19144

blankertz@aol.com

Principal Investigator: Laura Blankertz

Public Contact: 215/569-2240, ext. 217; Fax: 215/438-8337

Project Number: H133G80084

Start Date: September 1, 1998

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 98 $123,297; FY 99 $124,685; FY 00 $123,963

Abstract: This project improves school-to-work transition services by comparing an experimental

and a comparison group on a variety of economic and noneconomic outcomes. The project builds

upon a pilot initiative, Project YES (Young-adult Employment Supports), which was designed to

develop a model for inter-system collaboration in the operation of a school-to-work transition program for youth with serious emotional disturbance. In this project, the Philadelphia Board of Education, the Philadelphia Office of Mental Health and its citywide network of provider agencies, and the

Philadelphia Office of the State Vocational Rehabilitation system, provide interventions through each

of three clearly delineated stages: (1) identification and engagement of youth leaving school, (2)

implementation of services, and (3) development of individual supports to maintain youth in posttransition activities. The seven economic and noneconomic factors compared include: use of mental

health and vocational rehabilitation services, types of employment, length of employment, wages

earned, self-esteem, empowerment and community involvement, and criminal activity.
1-28 Employment Outcomes

Field-Initiated Projects (FIPs)

Virginia

Enhancing Consumer-Counselor Working Relationships in

Rehabilitation: An Empirical Research Investigation of Counselor

Expectancies and Working Alliance as Variables for Optimizing

Consumer-Counselor Relationships, Consumer Satisfaction, and

Rehabilitation Outcomes

Virginia Commonwealth University

Department of Rehabilitation Counseling

P.O. Box 980330

Richmond, VA 23298

bmcbull@vcu.edu

http://views.vcu.edu/sahp/rehab

Principal Investigator: Brian McMahon, PhD

Public Contact: Carolyn Hawley, 804/828-1132; Fax: 804/828-1321

Project Number: H133G80135

Start Date: August 1, 1998

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $124,444; FY 99 $124,767; FY 00 $124,618

Abstract: This project brings the concept of “consumer involvement” to a place beyond the level of

good intentions, rhetoric, platitude, and legal mandate; it provides practical tools with which relevant

constructs can be measured and changed to build meaningful partnerships. Maximizing the involvement of consumers in the vocational rehabilitation (VR) process in a meaningful manner can be

accomplished if the working alliance between counselor and consumer is strengthened in a direct and

measurable way. The target audience includes clients with severe disabilities of the state-federal VR

program and the counselors who are employed to provide them with services.
Employment Outcomes 1-29

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research SBIR Phase I

California

Internet-Based Presentation of Role Models for Youth

in Transition from School to Work

InfoUse

2560 Ninth Street, Suite 216

Berkeley, CA 94710-2566

ljans@infouse.com

http://www.infouse.com

Principal Investigator: Lita Jans, PhD, 510/549-6509

Public Contact: 510/549-6520; Fax: 510/549-6512

Project Number: ED-00-CO-3590

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 00 $49,932

Abstract: This project creates a prototype Internet site, featuring adults with disabilities who can

serve as role models for transition-age students. This Web-based product, with supplemental CDROM and text discussion guide, offers 7th- to 12th-grade students an opportunity for career awareness and exploration and an aid to eventual career selection. The prototype presents six working

adults representing various ethnicities, disabilities, and a range of traditional and nontraditional

careers that require a variety of postsecondary education and vocational preparation. Role models are

important in shaping students’ expectations for their futures, including the range of possible career

options. Through role models, young people develop a sense of their own potential, an awareness of

a variety of careers, and realistic expectations about possible career challenges. Students with disabilities frequently lack exposure to adults with disabilities who work effectively in their careers and

cope effectively with workplace challenges.
1-30 Employment Outcomes

Small Business Innovative Research (SBIR), Phase I

Hawaii

Computer-Based Multimedia Interactive “E-Entrepreneur”

Training for Individuals with Disabilities

Pacific Business Insights, Inc. (PBI)

P.O. Box 249

Honaunau, HI 96726

jsgeer@shaka.com

Principal Investigator: Sajean Geer

Public Contact: 808/328-9981; Fax: 808/328-9981

Project Number: ED-00-PO-3953

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Donna McCole

NIDRR Funding: FY 00 $50,000

Abstract: This project tests the technical merits and feasibility of a computer-based training system

that is accessible “anytime and anywhere” by individuals with disabilities. The goal is to train

individuals with disabilities to leverage computing, telecommunication, and disability-specific addon assistive technologies to start, operate, and manage businesses electronically - to be successful Eentrepreneurs and business people. The combination of Internet-enabled E-business with assistive

technologies is a great democratizing force and provides unprecedented self-employment opportunities for individuals with disabilities. In geographically remote rural areas such as the island of Hawaii, the project research site, self-employment is often the only option for employment for individuals with disabilities.
Employment Outcomes 1-31

Small Business Innovative Research (SBIR), Phase I

Wisconsin

Fair and Appropriate Community Employment (FACE): A

Management Information System (MIS) for Evaluating Impact

of Employment Programs on Persons with Disabilities

Research Solutions International (RSI)

FACE Ground Zero

N4807 449th Street

Menomonie, WI 54751

cokerc@charter.net

Principal Investigator: Charles C. Coker, PhD

Public Contact: 715/235-7531; Fax: 715/235-0482

Project Number: ED-00-PO-3955

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 00 $50,000

Abstract: The purpose of this grant is to develop a comprehensive Fair and Appropriate Community

Employment (FACE) management information system (MIS) that consists of four major components: (1) case management to track clients while providing services and/or employment; (2) profiling clients on the four domains of FACE upon entry to the program, at exiting, and at various followup periods for the purpose of identifying the value added to the client; (3) identifying and tracking

the cost of various activities provided to clients; and (4) using Benefit-Cost Analyses to assess the

effectiveness and efficiency of the service and/or employment program from the perspectives of the

individual, organization, funding agencies, taxpayer, and society. While several rigorous research

methodologies have been designed to examine the relationship between rehabilitation services and

employment outcomes, the actual collection of data from 7,000 community rehabilitation programs

(CRPs), which serve nearly 4 million people with disabilities, has met with much less success. There

is a critical need for a comprehensive management information system that CRPs can use to evaluate

the relationship between services provided to employment and other outcomes achieved by consumers with various disabilities and backgrounds. Over the past five years, the concept of Fair and

Appropriate Community Employment has been developed as a theoretical approach for CRPs to

evaluate the effectiveness and efficiency of their service interventions upon outcomes. The first

FACE MIS prototype software is being installed at the L. E. Phillips Career Development Center,

Eau Claire, Wisconsin with the assistance of Betty Reinke, Director of Programs & Services.
1-32 Employment Outcomes

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research SBIR Phase II

Florida

AbilityForum.com

Golden Ventures

3312 West Hawthorne Road

Tampa, FL 33611

dgolden@abilityforum.com

http://www.abilityforum.com

Principal Investigator: Dawn Golden

Public Contact: 813/835-5970; Fax: 813/831-5124

Project Number: ED-00-PO-0219

Start Date: September 1, 2000

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $150,000

Abstract: This project further develops an Internet-based job opportunity network and social support

Web site for people with disabilities. The goal of Phase II is to enhance the site in order to increase

the use rates and thereby increase the revenue potential of the venture in order to become selfsustaining. Enhancements expand the information sources, content, and features. The Web site

currently includes three main areas: employment, reference materials, and avenues for social support. It is anticipated that a larger number of people with disabilities could be employed if they could

work from their homes. The employment section provides current job postings from around the

country as well as new job search tools. Networks of universities, rehabilitation sites, and partner

Web sites expand the reference area with a broader array of products, educational programs, and

service postings. Other new features include: news updates, events, videos, and finance information.

The Web site is designed for use by persons with a variety of disabilities and is compliant to the Web

Content Accessibility Guidelines. For individuals that are homebound, this provides an exciting

outlet for interaction and growth.
Health and Function

NIDRR’s research focus for health and function addresses problems in individual

care, services, and supports for people with disabilities. Research topics include:

medical rehabilitation; health and wellness programs; service delivery; short and

long-term interventions; systems research; and new and emerging disabilities.

Contents

Rehabilitation Research and Training Centers (RRTCs) ...................................................................... 1

Disability and Rehabilitation Research Projects ................................................................................ 14

Model Burn Injury Systems................................................................................................................ 22

Model Spinal Cord Injury Systems .................................................................................................... 27

Model Traumatic Brain Injury Systems ............................................................................................. 45

Field-Initiated Projects (FIPs) ............................................................................................................ 62

Health and Function 2-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Alabama

Rehabilitation Research and Training Center on Secondary

Conditions of Spinal Cord Injury: Promoting General Health, WellBeing, and Community Integration Through Home-Based, SelfDirected Care

University of Alabama/Birmingham

Department of Physical Medicine and Rehabilitation

619 - 19th Street South, SRC 529

Birmingham, AL 35249-7330

rtc@sun.rehabm.uab.edu

http://main.uab.edu/show.asp?durki=8762

Principal Investigator: Amie B. Jackson, MD, 205/934-3334 (V); 205/934-3330 (V);

205/934-4642 (TTY)

Public Contact: Linda Lindsey, Assistant Director, Research Services, 205/934-3283;

Fax: 205/975-4691

Project Number: H133B980016

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 98 $799,993; FY 99 $799,998; FY 00 $799,998

Abstract: This RRTC conducts coordinated, integrated, and advanced research in the prevention and

treatment of secondary conditions of spinal cord injury (SCI). The eight interrelated projects include:

(1) determine the effectiveness of cranberry pills to prevent and treat urinary tract infections (UTIs);

(2) evaluate interventions used to prevent and treat UTIs in people with SCI using the University of

Alabama/Birmingham SCI Urologic Database; (3) study the relationship of beverage consumption

and water hardness to the risk of urinary tract stones; (4) address pain following SCI by evaluating

SCI pain classification systems, studying the effectiveness of gabapentine and methadone in relieving certain types of pain, and developing a method to target those at risk; (5) determine the duration

of immune response to pneumococcal vaccine and the need for revaccination; (6) evaluate a screening tool to identify people with SCI at high risk for sleep apnea, and evaluate treatments to improve

their health and quality of life; (7) study the use of telemedicine to reduce depression and secondary

conditions among people with SCI and their caregivers through problem solving interventions; and

(8) evaluate and adapt a nationally recognized weight-loss project for a population of people with

SCI. A collaborative project with another Center evaluates a computer-based risk assessment and

feedback tool for assessing secondary conditions. This RRTC provides training on research methodology and information based on research activities to people with disabilities, their families, service

providers, and rehabilitation professionals. Information is disseminated through print media (information sheets and newsletters), electronically (through the Internet and a fax information service),

and through technical assistance.
2-2 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center

in Neuromuscular Diseases

University of California/Davis

MED: Physical Medicine and Rehabilitation

TB 191

Davis, CA 95616-8655

nmdinfo@ucdavis.edu

http://www.rehabinfo.net

Principal Investigator: Craig McDonald, MD

Public Contact: Kathryn Devereaux, PhD, Training and Information Services Director, 530/752-

2903 (V); Fax: 530/752-3468

Project Number: H133B980008

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $650,000; FY 99 $650,000; FY 00 $650,000

Abstract: This project conducts research designed to enhance the quality of life of people with

neuromuscular diseases. Through multidisciplinary research and a comprehensive program of training and information services, the Center serves consumers, physicians, and health care workers.

Program areas include: interventions to preserve functional capacity including management of

weakness and respiratory insufficiency due to muscle wasting, exercise interventions, treatment of

exercise related fatigue, pain interventions, lower limb orthotic interventions, and dietary interventions; interventions to enhance community integration, including incorporating goal-based approaches to community integration, facilitation of healthy adaptation through development of stress

management and coping skills, and resource training for acquisition of disability-related information

through the Internet; genetic testing, information, and research; and training and information services.
Health and Function 2-3

Rehabilitation Research and Training Centers (RRTCs)

California

Aging with Spinal Cord Injury (SCI)

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, 800 West Annex

Downey, CA 90242

rrtcsci@aol.com

http://www.agingwithsci.org

Principal Investigator: Bryan J. Kemp, PhD; Robert L. Waters, MD

Public Contact: Lilli Thompson, Training Director, 562/401-7402; Fax: 562/401-7011

Project Number: H133B70011

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 97 $650,000; FY 98 $650,000; FY 99 $650,000; FY 00 $650,000

Abstract: The Rehabilitation Research and Training Center (RRTC) on Aging with Spinal Cord

Injury (SCI) is devoted to understanding the unique problems people with spinal cord injury experience as they age. Topics of research include: the natural course of aging with SCI, cardiovascular

disease (CVD) and risk factors of CVD, pulmonary aspects of aging with SCI, bone loss, functional

changes associated with age and duration of SCI, maintaining employment, treatment of depression,

and informal and formal care systems for people aging with SCI. The RRTC has several goals for

education, training, dissemination, and utilization: (1) to train current and future health, allied health,

and rehabilitation professionals about aging with SCI; (2) to train and develop rehabilitation research

professionals in the area of aging with SCI; (3) to improve adoption and use of RRTC-developed

knowledge and treatment regimens by health and rehabilitation professionals; (4) to disseminate

information about aging with SCI to people with SCI and their families; and (5) to train graduate

students and medical students in advanced knowledge and techniques from studies about aging with

SCI. Training and dissemination occurs through advanced and continuing education courses, local

and national conferences, workshops, publications in professional and consumer oriented journals,

and the Internet.
2-4 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center

on Aging with a Disability

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, 800 West Annex

Downey, CA 90242-4155

gracefg@agingwithdisability.org

http://www.agingwithdisability.org

Principal Investigator: Bryan J. Kemp, PhD

Public Contact: Grace Farwell Granger, Associate Training Director, 562/401-7402; Fax: 562/401-

7011

Project Number: H133B980024

Start Date: September 1, 1998

Length: 60 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000

Abstract: This project assists people who are aging with a disability by conducting a series of

research studies using a database of over 1,000 people who represent a variety of disabilities (for

example, cerebral palsy, rheumatoid arthritis, stroke, spinal cord injury, polio). Research projects

include: (1) the natural course of aging with a disability, (2) assisting family caregivers of people

aging with a disability, (3) improving community integration and adjustment, (4) preventing secondary complications such as diabetes and thyroid disorders, (5) improving bone density through a

regimen of exercise and vitamins, and (6) understanding the role of assistive technology (AT) and

environmental interventions (EI) in maintaining functional performance. Training, dissemination,

and technical assistance activities focus on students and professionals in the health, allied health, and

rehabilitation fields, as well as people aging with a disability and their families. Goals include

training rehabilitation researchers knowledgeable about aging with a disability, improving the adoption and utilization of RRTC-developed assessment and treatment regimens by health and rehabilitation professionals, and disseminating information about aging with a disability to people with disabilities and their families. Training and dissemination occurs through advanced and continuing

education courses; local, national, and international conferences; workshops; publications in professional and consumer oriented journals; and the Internet.
Health and Function 2-5

Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Managed Health Care for Individuals with Disabilities

MedStar Research Institute

NRH Center for Health and Disability Research

1016 - 16th Street, Northwest, Suite 400

Washington, DC 20036

gxd3@mhg.edu

http://www.ilru.org/mgdcare/index.html

Principal Investigator: Gerben DeJong, PhD

Public Contact: Olga Elizabeth Hayes, 202/466-1919; Fax: 202/466-1911

Project Number: H133B70003

Start Date: May 1, 1997

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 97 $499,969; FY 98 $499,988; FY 99 $500,000; FY 00 $700,000

Abstract: This project provides national leadership on the major health service and health policy

issues facing consumers with disabilities in managed health care arrangements. It: (1) conducts

research; (2) prepares special policy analyses; (3) hosts forums for discussion; (4) presents expert

testimony to Congress and governmental agencies; (5) publishes in the health policy, consumer, and

trade literature; (6) trains graduate students with disabilities in health service research; and (7)

disseminates findings to diverse consumer, provider, payer, academic, and policy-making audiences.

On the state and national levels the project seeks to make managed care and the larger health care

system more responsive to the needs of people with disabilities by acting as a catalyst for the development of new ideas. Program partners are the NRH Center for Health and Disability Research in

Washington DC and the Independent Living Research Utilization (ILRU) center in Houston Texas.
2-6 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

National Rehabilitation Research and Training Center

for Children with Disabilities with Special Health Care Needs

Georgetown University

Child Development Center

3307 M Street Northwest, Suite 401

Washington, DC 20007

nttrc@gunet.georgetown.edu

Principal Investigator: Phyllis Magrab, PhD

Public Contact: Tammy Abdou, Program Coordinator, 202/687-8617; Fax: 202/687-8899

Project Number: H133B001200

Start Date: July 1, 2000

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 00 $699,956

Abstract: This center improves rehabilitation outcomes for children and youth with disabilities with

special health care needs by increasing the effectiveness of service systems. Using an integrated,

multifaceted research program, and related training, dissemination, and technical assistance activities, the program targets five areas: (1) access to rehabilitative services, (2) impact on health services

within managed care, (3) promising practices of transition to adult health care in managed care

settings, (4) training to address skills needed by professionals in relation to assistive technology, and

(5) appropriateness and effectiveness of telerehabilitation in geographically remote areas. In addition, a variety of strategies utilize this information and other knowledge to provide training and

technical assistance to the target audiences of families, consumers, providers, researchers, policymakers, and managed care organizations to improve rehabilitative services to this population in order

to enhance their quality of life and that of their families. The RRTC is run by the Georgetown University Child Development Center in collaboration with Brandeis University’s Heller School, the

University of Florida’s Institute of Child Health Policy, and Family Voices.
Health and Function 2-7

Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Access to Rehabilitation and Empowerment Opportunities

for Minority Persons with Disabilities

Howard University

2900 Van Ness Street Northwest

Holy Cross, Room 100

Washington, DC 20008

swalker@howard.edu

http://www.law.howard.edu/HURTC/HURTC.html

Principal Investigator: Sylvia Walker, EdD

Public Contact: 202/806-8086; Fax: 202/806-8148

Project Number: H133B000903

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $600,000

Abstract: The Howard University Research and Training Center for Access to Rehabilitation and

Empowerment Opportunity (HURTC) is implementing a RRTC on Access to Rehabilitation and

Empowerment Opportunities for Minority Persons with Disabilities to help them achieve selfdetermination, economic independence, and full participation in American life. The program of the

Center is designed to attain the following objectives: identify methodological problems determining

the rehabilitation needs of persons with disabilities from minority backgrounds (including subpopulations within these groups) and propose strategies to address these methodological problems;

based on research findings, identify implications for rehabilitation research, training, policy development, and services; assess the outcomes of rehabilitation for persons with disabilities from minority

backgrounds as measured by two or more variables (such as functional abilities, wellness, employment, health/wellness, and psychosocial status); analyze the affects of minority status on rehabilitation outcomes; and identify, develop, and evaluate rehabilitation methodologies, models, and interventions for specific minority groups. The HURTC collaborates with the Center for Disease Control,

the Center for Minority Health, and a variety of stakeholders including consumers with disabilities,

state agencies, continuing education programs, and community-based organizations.
2-8 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center

on Aging with Developmental Disabilities

University of Illinois/Chicago

Department of Disability and Human Development

College of Health and Human Development Sciences MC 626

1640 West Roosevelt Road

Chicago, IL 60608-6904

rrtcamr@uic.edu

http://www.uic.edu/orgs/rrtcamr

Principal Investigator: Tamar Heller, PhD; David Braddock, PhD

Public Contact: Ann Cameron Williams, 800/996-8845 (V); 312/413-1860 (V); 312/413-0453

(TTY); Fax: 312/996-6942

Project Number: H133B980046

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 98 $699,934; FY 99 $699,987; FY 00 $699,985

Abstract: This project promotes the independence, productivity, community inclusion, full citizenship, and self-determination of older adults with mental retardation through a coordinated program of

research, training, technical assistance, and dissemination activities. The research program aims to

increase knowledge about the changing needs of older adults with mental retardation and their

families as they age, and to increase the effectiveness of innovative approaches, public policies, and

program interventions that provide needed supports and that promote the successful aging of these

adults and their families. It examines how age-related changes in physical and psychological health

affect the ability to function in the community, including home, work, and leisure settings. The

research program also identifies best practices and current public policies that support these adults

and their families. The primary goal is to translate the knowledge gained into practice through broadbased training, technical assistance, and dissemination to people with mental retardation, their

families, service providers, administrators and policy-makers, advocacy groups, and the general

community. Dissemination vehicles include the Center’s clearinghouse, Web site, and newsletters.

This project participates in the NIDRR Scholars program, providing motivated undergraduates with

internship experience in disability research.
Health and Function 2-9

Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Stroke Rehabilitation

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611

Principal Investigator: Elliot J. Roth, MD, 312/238-4637

Public Contact: Linda Lovell, Project Coordinator, 312/238-6197; Fax: 312/238-6998

Project Number: H133B980021

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000

Abstract: This project tests the effectiveness of several stroke rehabilitation strategies and tactics,

trains stroke survivors and professionals, and disseminates knowledge relevant to stroke care. In

order to extend the knowledge base of stroke rehabilitation, produce changes in clinical practice, and

enhance the quality of life of stroke survivors and their families, the Center: (1) identifies, develops,

and evaluates rehabilitation techniques in order to address coexisting and secondary conditions and

improve outcomes for all stroke patients; (2) develops and evaluates standard aerobic exercise

protocols; (3) identifies and evaluates methods to identify and treat depression and other psychological problems associated with stroke; (4) determines the effectiveness of stroke prevention education

provided in a medical rehabilitation setting; (5) evaluates the impact of changes in diagnosis and

medical treatment of stroke on rehabilitation needs; (6) evaluates long-range outcomes for stroke

rehabilitation across different treatment settings; (7) evaluates the impact of stroke practice guidelines on delivery and outcomes of rehabilitation services; (8) provides training on new approaches,

innovations, and the specialized principles and practices of rehabilitation care of individuals with

stoke; (9) provides applied research experience and training in research principles and methods; (10)

disseminates information of new developments in the area of stroke care and research to people with

stroke and their families, rehabilitation professionals, and service providers; and (11) conducts a

state-of-the-science conference. The Center has a large database of information regarding stroke

rehabilitation patients and continues ongoing systems and activities to collect and analyze data

concerning stroke impairment, disability, and social functioning. This project participates in the

NIDRR Scholars program, providing motivated undergraduates with internship experience in disability research.
2-10 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

Missouri

Missouri Arthritis Rehabilitation Research and

Training Center (MARRTC)

University of Missouri/Columbia

Department of Physical Medicine and Rehabilitation

DC330.00

One Hospital Drive

Columbia, MO 65212

bakerv@health.missouri.edu

http://www.muhealth.org/~arthritis

Principal Investigator: Jerry C. Parker, PhD, 573/814-6480

Public Contact: Valerie Baker, 573/884-1499; Fax: 573/884-3020

Project Number: H133B980022

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000

Abstract: MARRTC helps to prevent and manage disability in people with arthritis and related

musculoskeletal disease by providing leadership at the national level through three strategies: (1)

MARRTC conducts state-of-the-art rehabilitation and health services research that addresses the

needs of people with arthritis and related musculoskeletal diseases in the following areas: exercise

and fitness, interventions for psychological well-being and pain, job accommodations and employment, and health and wellness using participatory action research (PAR) strategies to emphasize the

inclusion of consumers in all phases of the research process; (2) MARRTC provides training for

physicians and other health care professionals in the rehabilitative aspects of rheumatologic practice,

including university-based programs, national presentations, research capacity-building, and publications aimed at improving clinical skills; and (3) MARRTC disseminates rehabilitation research and

technology transfer for the empowerment of people with arthritis to help them to minimize disability,

maintain employment, and improve functional status.
Health and Function 2-11

Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center on Health

and Wellness for Persons with Long-Term Disabilities

Oregon Health Sciences University

Oregon Institute on Disability and Development

Child Development and Rehabilitation Center

707 Southwest Gaines

P.O. Box 574

Portland, OR 97207-0574

minnich@ohsu.edu

http://www.healthwellness.org

Principal Investigator: Gloria Krahn, PhD, 503/494-8364

Public Contact: Susan Maley, Project Coordinator, 503/494-7930; Fax: 503/494-6868

Project Number: H133B990019

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $700,000; FY 00 $700,000

Abstract: The Center has a comprehensive program of research, training, technical assistance, and

dissemination with primary attention given to the physical and mental aspects of health for people

with long-lasting disabilities such as cerebral palsy, spinal cord injury, multiple sclerosis, amputation, and post-polio. Interconnected research areas include evaluating health assessment definitions,

practices, policies, and measurement, and their impact on health promotion and investigating the

relationship between selected health maintenance strategies and the incidence and severity of secondary conditions and other functional outcomes. Center projects examine the practices of exemplary generic and specialized health promotion programs; analyze the health behaviors and related

functional outcomes of individuals with disabilities; examine the relationship between health definitions, practices, and secondary conditions to develop a screening tool for health and wellness for

people with disabilities; and investigate the association between disability and differential detection

of cancer. The Center’s third area of focus centers on identifying and evaluating best practices in

health promotion. These include an Internet-delivered reproductive health promotion package,

strategies for enhancing the participation of individuals with disabilities in self-directed physical

activity, the accessibility of alcohol and drug treatment programs to people with disabilities, and

methods for culturally responsive health promotion. An additional research focus is the use and

efficacy of complimentary alternative medicine among people with these specific long-term disabilities.
2-12 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

Texas

Rehabilitation Research and Training Center

on Rehabilitation Interventions Following Traumatic Brain Injury

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

1333 Moursund Avenue

Houston, TX 77030-3498

whigh@bcm.tmc.edu

Principal Investigator: Walter M. High Jr., PhD

Public Contact: 713/666-9550; Fax: 713/668-5210

Project Number: H133B990014

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $650,000; FY 00 $650,000

Abstract: The Center promotes the scientific advancement of rehabilitation research by focusing on

several areas identified as needing further research. These include areas of weakness in the current

knowledge and future research regarding traumatic brain injury (TBI) recovery and rehabilitation

effectiveness: improvement of the diagnosis and treatment of persons with mild TBI; development of

interventions to assist school-age children with TBI; the needs of minority groups members with

TBI; evaluation of the effectiveness of rehabilitation interventions; and treatment for the family

members of people with TBI. Activities include publishing an informational and technical assistance

resource for consumers and professionals; training for medical and neuropsychological fellows in

rehabilitation research; coordinating a state-of-the-science conference on mild TBI; and producing an

educational videotape to train family members in effective coping skills. Through representation on

the advisory committees, consumers are involved in all aspects of planning and evaluating research

and training activities.
Health and Function 2-13

Rehabilitation Research and Training Centers (RRTCs)

Washington

Multiple Sclerosis Rehabilitation Research and Training Center

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98195-6490

msrtc@u.washington.edu

http://depts.washington.edu/rehab/MS

Principal Investigator: George H. Kraft, MD, 206/543-7272

Public Contact: Ed O’Shaughnessy, Research Program Administrator, 206/221-5688; Fax: 206/685-

3244

Project Number: H133B980017

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 98 $691,314; FY 99 $697,978; FY 00 $697,978

Abstract: This Center promotes health and wellness of people with multiple sclerosis (MS) and

improves their functioning and employment status. Fundamental to the project is a health survey

administered to people with MS throughout the Northwest region. Information from the survey is fed

into six project components: (1) promoting wellness among people with MS through brief counseling methods; (2) improving the functioning of people with MS through three studies: improving

psychological distress using pharmacological intervention, evaluating the combined effect of cooling

and exercise on performance, and improving function through cognitive rehabilitation interventions;

(3) exploring the employment status of people with MS; (4) designing practical interventions and

workplace modifications; (5) studying the interaction between aging and MS; and (6) exploring the

effects of gender, culture, socioeconomic status, ethnicity, place of residence, and insurance coverage

on people with MS, in regard to symptomology and response to treatments. Researchers develop and

apply interventions and conduct follow-up surveys to evaluate the effectiveness of the intervention

strategies. This Center collaborates with the RRTC on Substance Abuse, the Consortium of MS

Centers, the National MS Society, and the MS Association of Kings County.
2-14 Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

District of Columbia

Rehabilitation Services for Persons with Emergent Disabilities:

Medical Rehabilitation Services for Persons with Disabilities

Medlantic Research Institute

National Rehabilitation Hospital Research Center

102 Irving Street Northwest

Washington, DC 20010

oeh1@mgh.edu

http://www.nrhrc.org

Principal Investigator: Gerben DeJong, PhD, 202/466-1900

Public Contact: Olga Elizabeth Hayes, 202/466-1919; Fax: 202/466-1911

Project Number: H133A990013

Start Date: August 8, 1999

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 99 $200,000; FY 00 $200,000

Abstract: This project evaluates: (1) changes in the medical rehabilitation industry; (2) the need for

and access to medical rehabilitation among individuals with emerging disabilities; and (3) the potential impact of these changes on the rehabilitation of individuals with emerging disabilities. The

project demonstrates empirically how structural changes in the post-acute health care market and the

emergence of previously unrecognized disabilities intersect, and outlines new challenges to health

care policy and service delivery. Emerging disabilities occur from changes in the social, economic,

and physical environment, such as social inequalities (e.g., violence-induced neurological trauma;

diabetes); changes in workplace technologies (e.g., repetitive motion syndromes); environmental

factors (e.g., child and adult asthma); and medical conditions with increasing prevalence (e.g., HIV/

AIDS; diabetes). The evaluation process is conducted through critical literature reviews, secondary

data analyses, and qualitative interviews with different stakeholder groups (including rehabilitation

and acute care providers, health plans, purchasers, consumers, and consumer advocacy groups). The

resulting synthesis illuminates the divergence/convergence of changes in the medical rehabilitation

industry and the unfolding needs of emerging disability populations, and informs health care policy

and health care delivery systems on how these new demands on post-acute care can be met adequately.
Health and Function 2-15

Disability and Rehabilitation Research Projects

Illinois

Exercise and Recreation for Individuals with a Disability:

Assessment and Intervention

Rehabilitation Institute of Chicago

Center for Health and Fitness

710 North Lake Shore Drive, Third Floor

Chicago, IL 60611

jjones02@rehabchicago.org

http://richealthfit.org/resrched/nidrr.htm

Principal Investigator: Jeffery Jones

Public Contact: 312/908-4292; Fax: 312/908-1051

Project Number: H133A60032

Start Date: November 1, 1996

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 96 $175,000; FY 97 $175,000; FY 98 $175,000; FY 99 (No-cost extension

through 8/31/00); FY 00 (No-cost extension through 11/30/00)

Abstract: This project demonstrates that participation in exercise and physical activity improves

function, facilitates community reintegration, and enhances the quality of life of people with disabilities. The project: (1) investigates the long-term effects of an exercise fitness program on the physiology, metabolic performance, and quality of life of people with spinal cord injury, stroke, and cerebral

palsy; (2) examines the role of self-efficacy in maintaining participation in an exercise fitness program; (3) describes the types and frequency of recreation and fitness activities among people who

have had a stroke, people with spinal cord injury, and people with cerebral palsy; (4) examines the

relationships between participation in recreation and exercise programs and health status, life satisfaction, and depression in the above populations; and (5) delineates barriers and deterrents to participation in recreation and exercise programs that exist for a variety of disability groups.
2-16 Health and Function

Disability and Rehabilitation Research Projects

Massachusetts

Access to Health Care Services for Persons with Disabilities:

Defining the Barriers and Strategies for Change

Medicaid Working Group

Boston University

School of Public Health

374 Congress Street, Suite 502

Boston, MA 02210

drainoni@bu.edu

Principal Investigator: Mari-Lynn Drainoni, PhD

Public Contact: 617/426-4447; Fax: 617/426-4547

Project Number: H133A990014

Start Date: October 1, 1999

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $245,434; FY 00 $245,434

Abstract: This project examines a wide range of access barriers to the continuum of health care

services for people with disabilities across the life span in Massachusetts. The objectives of the

research project are: to examine variation in access to health care services by provider type; to

examine different types of access important for people with disabilities: physical access, communication access, cognitive access, and medical access; to identify changes made since the passage of

the ADA; to identify barriers to health care services as experienced by individuals with disabilities

and compare this experience with provider perceptions; to identify best practices that mitigate access

barriers; to develop a research agenda for future activities in this area; and to develop dissemination

products that advance both knowledge and practice among purchasers, regulators, health plans,

providers, and people with disabilities. The project examines the accessibility of a range of health

care providers, including outpatient clinics, hospital outpatient departments, mental health and

substance abuse treatment providers, dentists’ offices, hospitals, rehabilitation facilities, acute

detoxification facilities, and assisted living facilities.
Health and Function 2-17

Disability and Rehabilitation Research Projects

Mississippi

Collaborative Study of Impaired Self-Awareness

After Traumatic Brain Injury

Mississippi Methodist Rehabilitation Center

Brain Injury Program

1350 East Woodrow Wilson Center

Jackson, MS 39216

marks@mmrcrehab.org

http://www.mmrcrehab.org

Principal Investigator: Mark Sherer, PhD

Public Contact: 601/364-3448; Fax: 601/364-3452

Project Number: H133A980067

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 98 $140,108; FY 99 $140,108; FY 00 $140,108

Abstract: This project creates new knowledge on impaired self-awareness (ISA) in people with

moderate to severe traumatic brain injury (TBI). ISA interferes with effective delivery of rehabilitation services, prevents self-advocacy, leads to distress within the family system, and negatively

affects social outcomes. This project studies its impacts and its subjective meaning for consumers in

order to design new treatments and service delivery innovations. It conducts the first large-scale

(N=160), prospective longitudinal study of ISA’s neural substrates, neuropsychological features,

natural history, and relationship to functional and quality-of-life outcomes over the first year following moderate-to-severe TBI. With several methodological innovations that improve interpretation of

the quantitative data, project researchers provide the first systematic qualitative study of self-awareness from the perspective of people with TBI and their families. The project uses: (1) the expertise of

researchers involved in TBI outcomes research, (2) many data elements already captured in the

Model System database and supported by Model System infrastructure, and (3) the high volume of

subjects and excellence of resources jointly available at the two collaborating sites. The project is a

collaboration between the TBI Model System of Mississippi and the TBI Model System at

MossRehab in Philadelphia. Findings are disseminated to consumers, rehabilitation professionals,

and the TBI Model Systems nationwide.
2-18 Health and Function

Disability and Rehabilitation Research Projects

Ohio

A Double-Blind, Placebo-Controlled Trial Exploring the Efficacy

 of Nortriptyline and Amantadine in the Management of

Post-Traumatic Agitation

Ohio State University

Department of Physical Medicine and Rehabilitation

Dodd Hall

480 West Ninth Street

Columbus, OH 43210

mysiw.1@osu.edu

Principal Investigator: W. Jerry Mysiw, MD

Public Contact: 614/293-3801; Fax: 614/293-3809

Project Number: H133A980056

Start Date: November 1, 1998

Length: 48 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $269,000; FY 99 $265,435; FY 00 $273,845

Abstract: This study provides objective data for evidence-based evaluation and treatment of the

most common behavioral impediment to acute rehabilitation, posttraumatic agitation. Posttraumatic

agitation is a dramatic behavioral consequence of traumatic brain injury (TBI) occurring in approximately 33 percent of coma-emerging patients. The agitated brain injury survivor has diminished

capacity to tolerate or respond to traditional rehabilitation services. At risk for injury and disruptive

to the therapeutic milieu, these patients consume considerable health care resources. Pharmacologic

intervention is becoming increasingly important in the care of posttraumatic agitation in an effort to

resolve the aberrant behavior promptly and permit the patient to respond to an expanded range of

rehabilitation services. This project offers a unique opportunity to develop the multicenter trial

needed to recruit a statistically meaningful cohort for study. The project involves a randomized,

double-blind, placebo-controlled study of two medications commonly used to treat agitation. The

study has specifically chosen measures of treatment efficacy with demonstrated validity in this

population. The study is done in collaboration with more than four NIDRR-funded Model Traumatic

Brain Injury Systems.
Health and Function 2-19

Disability and Rehabilitation Research Projects

Pennsylvania

Treatment of Shoulder Dysfunction in Polio Survivors

and Elderly Adults with Lower Extremity Impairment

MossRehab

Albert Einstein Healthcare Network

1200 West Tabor Avenue, Korman Suite 213

Philadelphia, PA 19141-3099

mklein@aehn2.einstein.edu

Principal Investigator: Mary G. Klein, PhD

Public Contact: 215/456-7864; Fax: 215/456-5926

Project Number: H133A000101

Start Date: July 1, 2000

Length: 24 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $233,074

Abstract: This project demonstrates how a well-structured exercise program can help to alleviate

shoulder symptoms in polio survivors. Research is needed to determine the effectiveness of treatment modalities, such as exercise, on shoulder overuse disorders in polio survivors and other populations with lower extremity impairments. Previous research has determined that shoulder pain is one

of the most frequent overuse symptoms seen among post-polio survivors. Additionally, elderly adults

who have lower extremity impairments, but no history of polio, also develop overuse symptoms.

This research uses a predictive model of shoulder pain that demonstrated that lower extremity weakness and weight were associated with the presence of shoulder overuse symptoms, thus suggesting

that these symptoms may arise from use of the upper extremities to compensate for lower extremity

weakness during transfers, stair climbing, and other activities. Exercise training is a potential means

of reducing the burden of both primary and secondary impairments in post-polio and elderly populations with significant lower extremity weakness, and an effective treatment for improving function

and quality of life. Other populations with lower extremity weakness who may benefit from this

research include those with muscular sclerosis or incomplete spinal cord injuries.
2-20 Health and Function

Disability and Rehabilitation Research Projects

Texas

Impact of Family Environment on Patient and Family Outcome

After TBI: A Multi-Center Study

Baylor College of Medicine

Brain Injury Research Center

4007 Bellaire Boulevard, Suite EE

Houston, TX 77025

asander@bcm.tmc.edu

Principal Investigator: Angelle M. Sander, PhD

Public Contact: 713/666-9550; Fax: 713/668-5210

Project Number: H133A980058

Start Date: November 1, 1998

Length: 48 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $224,989; FY 99 $210,239; FY 00 $210,239

Abstract: This study determines the importance of the pre-injury family environment in the prediction of long-term patient and family outcome after traumatic brain injury (TBI). The research develops models that can be used to identify family members and patients who are at risk for developing

long-term adjustment problems. Information gained is also used to develop and pilot a structured

family intervention. Previous research has shown that TBI results in substantial distress for a majority of family members. Research conducted with parents of children with TBI indicates that preinjury family functioning has an impact on children’s outcome. Similar studies have not been conducted with the population of adults with TBI. In this project data is collected at three Model System

Centers: The Institute for Rehabilitation and Research (TIRR), Mississippi Methodist Rehabilitation

Center (MMRC), and the Mayo Medical Center (MAYO); data collection is integrated with the

current Model Systems Research Protocol. Systematic dissemination activities are designed to target

consumers (people with TBI and their families) and rehabilitation professionals.
Health and Function 2-21

Disability and Rehabilitation Research Projects

Texas

Effects of Methylphenidate on Working Memory and Cerebral Glucose

Metabolism in Persons with Severe Traumatic Brain Injury

Baylor College of Medicine

Cognitive Neuroscience Laboratory

6560 Fannin Street, Box 67, Suite 1144

Houston, TX 77030

hlevin@bcm.tmc.edu

Principal Investigator: Harvey S. Levin, PhD

Public Contact: Keisha S. Johnson, 713/798-4860; Fax: 713/798-1456

Project Number: H133A980073

Start Date: December 1, 1998

Length: 48 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $279,903; FY 99 $274,319; FY 00 275,255

Abstract: This project conducts a multicenter clinical trial of methylphenidate (MPH) to treat

deficits in working memory and other cognitive impairments resulting from severe traumatic brain

injury (TBI). MPH is a potentially cost-effective intervention that could mitigate frequent and disabling cognitive impairments and thereby improve the lives of people with TBI, their families, and

caregivers. By using functional brain imaging to identify the mechanism through which MPH improves cognitive functioning, the project seeks direction for developing pharmacologic interventions

for people with TBI. A total of 144 people with severe TBI are recruited at three TBI Model Systems

Centers (including The Institute for Rehabilitation and Research, Houston, Texas, and the Department of Rehabilitative Medicine, University of Washington, Seattle, Washington). All have a working memory deficit on one or both screening tests and no medical contraindications for MPH treatment. Working memory, long-term memory, processing speed, everyday memory, and productivity

in performing adaptive activities are assessed at pretreatment baseline. Subsets of participants also

undergo functional magnetic resonance imaging to evaluate changes in patterns of brain activation.

Results are disseminated through publications, presentations, and Internet media to NIDRR Model

Systems network investigators, other researchers, rehabilitation providers, family members, and

payers.
2-22 Health and Function

Model Burn Injury Systems Model Burn Injury Systems

Colorado

Model System for Burn Injury Rehabilitation

University of Colorado Health Sciences Center

School of Medicine

Department of Preventive Medicine and Biometrics

4200 East Ninth Avenue, Box B119

Denver, CO 80262

rebecca.sloan@uchsc.edu

http://mama.uchsc.edu/pub/nidrr

Principal Investigator: Dennis C. Lezotte, PhD, 303/315-6873

Public Contact: Rebecca Sloan, Database Administrator, 303/315-0320; Fax: 303/315-3183

Project Number: H133A980055

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $125,000; FY 99 $125,000; FY 00 $125,000

Abstract: The Burn Model System/Data Coordinating Center (BMS/DCC) works for and regularly

communicates with all clinical BMS principal investigators and their staff to provide the necessary

technical, data management, research, and data analysis support for evaluating burn care and rehabilitation outcomes. The DCC and all sites periodically assess specific data elements and operational

definitions to become part of a common data dictionary that supports broad-based health services

and resource utilization research. The activities of the DCC include developing strategies for establishing and deploying methods to: (1) ensure standard data collection over time; (2) retrieve and

integrate each clinical center’s common dataset into a combined database; (3) perform essential

quality control checks and distribute site-specific error reports; (4) compile and distribute annual

program summaries; (5) perform and monitor statistical analyses required of the combined database;

(6) assist in the design and support of special ad-hoc research projects; and (7) assist in the dissemination of summary and scientific reports addressing the utility and effectiveness of Burn Model

System clinical and rehabilitation strategies.
Health and Function 2-23

Model Burn Injury Systems

Maryland

Johns Hopkins University Burn Injury Rehabilitation Model System

Baltimore Regional Burn Center

Johns Hopkins Bayview Medical Center

4940 Eastern Avenue

Baltimore, MD 21224

jfauerba@jhmi.edu; delateur@jhmi.edu

http://www.jhbmc.jhu.edu/brbc/birms

Principal Investigator: James A. Fauerbach, PhD; Barbara J. deLateur, PhD, 410/550-0894

(Fauerbach); 410/532-4717 (deLateur)

Public Contact: Jen Smith, 410/550-5298; Fax: 410/550-7942; 410/532-4719 (deLateur)

Project Number: H133A70025

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $294,375; FY 98 $294,375; FY 99 $294,375; FY 00 $294,375

Abstract: This project provides a systematized protocol for the care of pediatric and adult patients

with severe burn injuries through a comprehensive and integrated program of research. The protocol

is expected to serve as a platform for an accessible and compatible database containing all relevant

data. The project validates and develops normative data for several measures related to physical,

psychosocial, and vocational outcomes (self-selected walking speed task, hand function test, adjustment to disfigurement, generic and burn-specific quality-of-life tests). Additionally, the project

conducts studies evaluating innovative methods of reducing functional impairment due to secondary

complications, such as cross-joint contractures, deconditioning, posttrauma distress, disfigurementrelated distress, and enhancing vocational quality-of-life and educational outcomes, including a

vocational rehabilitation intervention and a school-based rehabilitation intervention. Experts provide

training to generalist health care professionals serving burn survivors in remote and rural regions.

Finally, researchers conduct collaborative studies with the University of Washington Model System

and the New York Hospital Center/Cornell University. This project contributes to the national statistics database at the University of Colorado Health Sciences Center.
2-24 Health and Function

Model Burn Injury Systems

Texas

Model System for Burn Injury Rehabilitation

University of Texas

Southwestern Medical Center

Physical Medicine and Rehabilitation Department

5323 Hines Boulevard

Dallas, TX 75390-9136

rholav@mednet.swmed.edu

http://www.swmed.edu/ntbrms/welcome.htm

Principal Investigator: Phala Helm, MD, 214/648-2288

Public Contact: Radha Holavanahalli, PhD, 214/648-9540; 214/648-3654; Fax: 214/648-2005

Project Number: H133A70023

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $295,000; FY 98 $295,000; FY 99 $295,000; FY 00 $295,000

Abstract: This multidisciplinary, comprehensive, and coordinated system conducts emergency,

medical/surgical, rehabilitation, psychosocial, and vocational activities. To address the goal of

prevention of secondary complications, the project conducts two site-specific studies: (1) comparing

use of sustained stretching with and without paraffin, and (2) comparing serial splinting with serial

casting. To develop and evaluate rural outreach programs, the project has established two quarterly

clinics in rural areas of northeast Texas and plans to initiate a third clinic in Fort Worth Texas. Also,

two collaborative research projects develop and evaluate functional outcome measures: (1) development and validation of a new physical functional outcome tool, and (2) assessment of the SF-36 as a

measure of community integration and quality of life. The project provides medical rehabilitation

and psychosocial interventions for people with burn injury, including children. Interventions are

evaluated by addressing several research questions. Also, children are evaluated by addressing

outcomes that may vary as a function of the services they received or the compliance of their families with treatment. This project contributes to the national statistics database at the University of

Colorado Health Sciences Center.
Health and Function 2-25

Model Burn Injury Systems

Texas

Pediatric Burn Injury Rehabilitation Model System

University of Texas Medical Branch

301 University Boulevard

Galveston, TX 77555

dherndon@utmb.edu

Principal Investigator: David Herndon, MD, 409/770-6731

Public Contact: Pat Blakeney, PhD, 409/770-6718; Fax: 409/770-6919

Project Number: H133A70019

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $295,000; FY 98 $295,000; FY 99 $295,000; FY 00 $295,000

Abstract: This project builds and analyzes a database of information on children and burns, including measures of cardiopulmonary function, physical growth and maturation, bone density, range of

motion, activities of daily living, scar formation, reconstructive needs, and measures of psychosocial

adjustment. Analysis determines areas that require improvement and measures of functional outcome

that can be used in the evaluation of treatment methods. Additionally, the project improves outcomes

by instituting and evaluating two modifications to current rehabilitation for children with large

severe burn injuries. First, an intensive inpatient rehabilitation program includes rigorous active

resistance exercise training and daily care directed by the complete medical and psychosocial rehabilitation team. Effectiveness is compared with functional outcomes achieved in traditional homebased programs. Second, the use of chronic growth hormone therapy is evaluated to increase growth,

strength, bone density, function, and well-being. The project assesses current methods of treatment

that subdue effects of scar formation. The project’s Community Resources Training Program operates in conjunction with selected existing outreach clinics and school reintegration programs. This

project contributes to the national statistics database at the University of Colorado Health Sciences

Center.
2-26 Health and Function

Model Burn Injury Systems

Washington

University of Washington Burn Injury Rehabilitation Model System

University of Washington

Harborview Medical Center

325 Ninth Avenue

Box 359796

Seattle, WA 98104

palacpac@u.washington.edu

http://staff.washington.edu/jaycee

Principal Investigator: Loren H. Engrav, MD, 206/731-3209

Public Contact: Dolores Palacpac, 206/731-2866; Fax: 206/731-3656

Project Number: H133A70014

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $295,000; FY 98 $295,000; FY 99 $295,000; FY 00 $295,000

Abstract: This model system: (1) identifies and evaluates techniques to prevent secondary complications; (2) develops and evaluates programs that improve follow-up services for rural populations;

(3) develops and evaluates measures of functional outcome for burn rehabilitation; and (4) identifies

and evaluates interventions, including vocational rehabilitation and special education interventions,

to improve psychosocial adjustment, quality of life, community reintegration, education, and employment-related outcomes. This project contributes to the national statistics database at the University of Colorado Health Sciences Center.
Health and Function 2-27

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Alabama

UAB Model Spinal Cord Injury Care System

University of Alabama at Birmingham

Spain Rehabilitation Center

619 19th Street South SRC 529

Birmingham, AL 35249-7330

lindsey@uab.edu

http://main.uab.edu/show.asp?durki=10712

Principal Investigator: Amie B. Jackson, MD, 205/934-3330

Public Contact: Linda Lindsey, Assistant Director Research Services, 205/934-3283 (V); 205/934-

4642 (TTY); Fax: 205/975-4691

Project Number: H133N000016

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $340,000

Abstract: The purpose of the University of Alabama at Birmingham (UAB) Spinal Cord Injury Care

System (UAB-SCICS) program is to provide cutting edge, cost effective, comprehensive care from

the moment of injury across the life span for persons who incur a spinal cord injury (SCI); to investigate ways of improving aspects of that system of care through clinical research; and to disseminate

project research findings to persons with spinal cord injury, their family members, and professional

care providers. UAB-SCICS includes three research projects: (1) investigating musculoskeletal/spine

changes in post-menopausal women with SCI; (2) carrying out a preemptive clinical trial to prevent

or minimize neuropathic pain; and (3) completing a longitudinal investigation of the processes

involved in coming to terms with disability over the first year post-injury. UAB-SCICS maintains

linkages with emergency medical service agencies throughout the state, with state and local vocational rehabilitation and long-term follow-up programs, with clinically oriented research activities

within the UAB-SCICS itself; with UAB’s companion Medical RRTC on Secondary Conditions of

SCI, as well as with clinical research programs being conducted at other Model SCI Systems. The

UAB-SCICS currently maintains the National Spinal Cord Injury Statistical Center.
2-28 Health and Function

Model Spinal Cord Injury Systems

California

Regional Spinal Cord Injury Care System of Southern California

Los Amigos Research & Education Institute, Inc.

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, HB117

Downey, CA 90242-4155

rwaters@dhs.co.la.ca.us

Principal Investigator: Robert L. Waters, MD, 562/401-7048

Public Contact: 562/401-7161; Fax: 562/803-5623

Project Number: H133N000029

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $345,000

Abstract: The Regional Spinal Cord Injury Care System of Southern California’s primary mission is

to collect initial and follow-up data on persons who have sustained spinal cord injuries and submit it

to the national statistics database at the University of Alabama at Birmingham. Another component

of the project focuses on literacy in individuals with spinal cord injury (SCI). Also, the project

identifies, evaluates, and eliminates environmental barriers, particularly cultural and social barriers,

to enable people with SCI to fully reintegrate into their community, and thus improve their lives. The

project has been designed to meet the needs of the approximately 75 percent minority and

underserved populations that comprise its clientele, and has samples sufficient for achieving adequate statistical power in the relevant designs and producing meaningful research. Finally, the

System contributes new and useful information to the current collection of SCI literature. This

project contributes to the national statistics database at the University of Alabama at Birmingham.
Health and Function 2-29

Model Spinal Cord Injury Systems

California

Model Spinal Cord Injury System

Santa Clara Valley Medical Center (SCVMC)

Medical Staff Corporation

950 South Bascom Avenue, Suite 2011

San Jose, CA 95128

tbisci@tbi-sci.org

http://www.tbi-sci.org

Principal Investigator: Tamara Bushnik, PhD, 408/295-9896

Public Contact: Fax: 408/295-9913

Project Number: H133N000007

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $340,000

Abstract: The system of care at the Santa Clara Valley Medical Center (SCVMC) that extends from

the scene of the accident to community reintegration has been developed through a program encompassing services, teaching and demonstration, and clinical research activities in its northern and

central California and Nevada catchment area. This effort continues to include community agency

staff and consumers and has produced a network of services addressing the needs of individuals with

spinal cord injury (SCI). Based on input from consumers and their family members, community

organizations, rehabilitation health professionals, and the rehabilitation literature, the research

program studies: (1) the efficacy of peer support, both group and one-on-one mentoring, to improve

quality of life, physical and psychosocial status, and community participation and integration; (2) if a

regular exercise program can improve the above mentioned community outcomes; (3) the effect of

high personal attendant turnover on the above mentioned variables and whether an intervention can

decrease that turnover and improve outcomes; and (4) the provision of SCI-specific education and

whether improving knowledge improves outcomes. This project contributes to the national statistics

database at the University of Alabama at Birmingham.
2-30 Health and Function

Model Spinal Cord Injury Systems

Colorado

The Rocky Mountain Regional Spinal Injury System

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80110-2811

susie@craighospital.org

http://www.craighospital.org

Principal Investigator: Daniel P. Lammertse, MD, 303/789-8220

Public Contact: Scott Manley, EdD, 303/789-8214 (V); 303/789-8575 (TTY); Fax: 303/789-8219

Project Number: H133N000001

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $375,0000

Abstract: The Rocky Mountain Regional Spinal Injury System (RMRSIS) emphasizes research and

significant contributions that have been made in the areas of spinal cord injury (SCI) costs of care,

aging, outcome assessment, high tetraplegia, neurorehabilitative surgery, and program evaluation, as

well as participation in randomized controlled multicenter clinical trials. An integrated research

agenda includes a controlled clinical trial of therapy for shoulder pain and evaluations of longitudinal outcomes of surgery for spinal cord myelopathies, recovery from pressure sore surgery,

perimenopausal symptoms and treatments in women with SCI, the issues of women who provide

assistance to a partner with SCI, and the impact of environmental barriers on the full participation in

of people with SCI. The project includes two highly regarded Level I and Level II trauma centers

with specialized acute neurotrauma care facilities (St. Anthony Hospital and Swedish Medical

Center) and the rehabilitation and lifetime follow-up services of Craig Hospital. These facilities

bring together a full complement of disciplines and specialists, medically directed by six full-time

physicians specializing in SCI acute and rehabilitation management, to provide all components of a

Model System of care. This project contributes to the national statistics database at the University of

Alabama at Birmingham.
Health and Function 2-31

Model Spinal Cord Injury Systems

Florida

South Florida Regional Spinal Cord Injury Model System

University of Miami

School of Medicine

P.O. Box 016960, R-48

Miami, FL 33101-9844

msipski@miamiproject.med.miami.edu

http://www.miamiproject.miami.edu

Principal Investigator: Marca L. Sipski, MD, 305/324-3174

Public Contact: Fax: 305/243-3395

Project Number: H133N000017

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $375,000

Abstract: This Model Spinal Cord Injury Center for the South Florida Spinal Cord Injury System

(SFSCIS) has established a multidisciplinary system of providing comprehensive rehabilitation

services, specifically designed to meet the special needs of individuals with spinal cord injury (SCI).

The clinical components of the SFSCIS include emergency medical services, acute care, vocational

and other rehabilitation services, community and job placement, long-term community follow-up

and health maintenance, a comprehensive prevention program, and a significant and substantial

research program focusing on the maintenance of health and function. The SFSCIS has three clinical

trials and six major research projects. Each of these projects studies interventions that improve

outcomes in the preservation or restoration of function following SCI. This project contributes to the

national statistics database at the University of Alabama at Birmingham. A program designed for

widespread dissemination of research and demonstration findings incorporates accommodations for

people with sensory impairments. In addition, culturally appropriate methods of education, training,

and outreach are interwoven throughout the projects. The project includes a comprehensive evaluation program. The SFSCIS is a cooperative effort between the University of Miami School of Medicine, and The Miami Project To Cure Paralysis and Jackson Memorial Hospital.
2-32 Health and Function

Model Spinal Cord Injury Systems

Georgia

Georgia Regional Spinal Cord Injury Care System

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road Northwest

Atlanta, GA 30309-1465

lesley_hudson@shepherd.org

http://www.shepherd.org

Principal Investigator: David F. Apple, Jr., MD, 404/350-7353

Public Contact: Lesley M. Hudson, MA, Project Co-Director, 404/350-7591; Fax: 404/355-1826

Project Number: H133N000005

Start Date: September 30, 2000

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $374,992

Abstract: The Georgia Regional Spinal Cord Injury Care System at the Shepherd Center, Inc.

admits approximately 200 individuals annually with acute onset paralysis secondary to spinal cord

injury (SCI). Post-discharge data is collected on 600 individuals each year. The continuum of care

begins at injury and continues through transport, assessment, acute care, rehabilitation, emotional

adjustment, community reintegration, and lifetime follow-up. At 100 beds, Shepherd Center, Inc. is

the largest free standing specialty hospital in the United States, and receives its patient population

primarily from Georgia, the rest of the Southeast, and the Eastern Seaboard. The project is an integral piece of the clinical research activity sponsored by the facility’s Crawford Research Institute,

and is responsible for ongoing referrals of acutely injured individuals, as well as the long-term

follow-up and data collection. This project contributes to the national statistics database at the

University of Alabama at Birmingham. In addition to database activities, the project is also involved

with site-specific research projects on: incomplete spinal cord injuries, enhanced long distance

technological communications with patients, and the determination of early predictors of secondary

complications.
Health and Function 2-33

Model Spinal Cord Injury Systems

Massachusetts

The New England Regional Spinal Cord Injury Center

Boston University Medical Center Hospital

Department of Rehabilitation Medicine

One Boston Medical Center Plaza, F-511

Boston, MA 02118-2393

shanker.nesathurai@bmc.org

http://www.bumc.bu.edu/Departments/HomeMain.asp?DepartmentID=91

Principal Investigator: Shanker Nesthurai, MD

Public Contact: Tricia Regan, Administrative Director of Rehabilitation Services, 617/638-7310;

Fax: 617/638-7313

Project Number: H133N000024

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $374,514

Abstract: The principal goals of the New England Regional Spinal Cord Injury Center (NERSCIC)

are to identify interventions with a high likelihood of promoting employment and reemployment and

to evaluate, systematically and scientifically, the efficacy of these strategies. The outcome is a

regional clinical and research capacity designed to meet the needs of people with spinal cord injury

(SCI), their employers and prospective employers, and the needs of people who provide their care.

The Model SCI System includes ten research projects: (1) a pilot study on the effects of Internet

access upon the health and social interactions of people with SCI; (2) a study of building accessibility in eastern Massachusetts; (3) a study of “way-finding” as confronting environment barriers and

facilities; (4) a return to work of twenty people with SCI; (5) a study of freehand; (6) secondary data

analysis of the inter-relationship among catheterization, smoking, and bladder cancer; (7) an insurance study identifying incentives and disincentives to work; (8) a study of the effects of health and

fitness on secondary conditions to initiating or continuing paid employment; (9) the child care and

dependent care needs of adults with disabilities and the effects of employment upon their children

and other dependents; and (10) a secondary analysis of Veterans with SCI. This project contributes to

the national statistics database at the University of Alabama at Birmingham.
2-34 Health and Function

Model Spinal Cord Injury Systems

Michigan

University of Michigan Model Spinal Cord Injury Care System

University of Michigan

Department of Physical Medicine and Rehabilitation

300 North Ingalls, Room NI2A09

Ann Arbor, MI 48109-0718

model.sci@umich.edu

http://www.med.umich.edu/pmr/model_sci

Principal Investigator: Denise G. Tate, PhD, ABPP, 734/936-7052

Public Contact: Martin Forchheimer MPP, Research Associate, 734/763-0971; Fax: 734/936-5492

Project Number: H133N000009

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $320,000

Abstract: The University of Michigan Model Spinal Cord Injury Care System provides comprehensive care and services to both children and adults, and is the only facility in Michigan to care for

ventilator-dependent persons of all ages with spinal cord injury (SCI). The project objectives are to:

(1) provide a continuum of comprehensive, multidisciplinary services for persons with SCI, from

emergency medical services to long-term community follow-up, with a focus upon maintaining

health; (2) demonstrate the effects of the continuum of comprehensive services, focusing on its

efficacy in promoting employment, health maintenance and wellness, independent living, and community reintegration; (3) conduct significant research, using a participatory action research approach

involving consumer input from inception through implementation; (4) operate an efficient service

system; and (5) develop and demonstrate methods of community outreach and education in collaboration with the Ann Arbor Center for Independent Living (AACIL) to reach professionals, consumers, and their families in other rehabilitation facilities and Centers for Independent Living (CILs) in

Michigan. These objectives emphasize community reintegration as a key outcome. The Model

System is in collaboration with the AACIL, with the goal of promoting community reintegration.

This partnership ensures a coordinated approach to clinical care, training, and research that integrates

consumer empowerment with comprehensive lifelong follow-up, bringing a consumer-professional

synergy to the project that serves as an example for other Model SCI Systems. This project contributes to the national statistics database at the University of Alabama at Birmingham.
Health and Function 2-35

Model Spinal Cord Injury Systems

Michigan

Southeastern Michigan Spinal Cord Injury System

Rehabilitation Institute of Michigan

261 Mack Boulevard

Detroit, MI 48201

mdijkers@med.wayne.edu

http://www.geocities.com/HotSprings/3799/aboutus.html

Principal Investigator: Marcel Dijkers, PhD

Public Contact: 313/993-7891; Fax: 313/966-7502

Project Number: H133N50006

Start Date: September 1, 1995

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 95 $373,000; FY 96 $373,000; FY 97 $373,000; FY 98 $373,000;

FY 99 $373,000; FY 00 (No-cost extension through 9/30/00)

Abstract: The Southeastern Michigan Spinal Cord Injury System is a research and demonstration

model of a comprehensive system of spinal cord injury (SCI) care, from point of injury through

emergency services, acute medical care at Detroit Receiving Hospital, rehabilitation management at

the Rehabilitation Institute of Michigan, and long-term community follow-up. The scope of work

includes evaluation of the costs and benefits of this system, and collaborative and local research to

solve medical management and rehabilitation problems. This project contributes to the national

statistics database at the University of Alabama at Birmingham.
2-36 Health and Function

Model Spinal Cord Injury Systems

Missouri

Missouri Model Spinal Cord Injury System

University of Missouri

Department of Physical Medicine and Rehabilitation

One Hospital Drive, DC046.00

Columbia, MO 65212

hagglundk@health.missouri.edu

http://www.hsc.missouri.edu/~momscis

Principal Investigator: Kristofer Hagglund, PhD, 573/882-8847

Public Contact: Joanne Willett, 573/884-7972 (V); 573/882-4936 (TTY); Fax: 573/884-2902

Project Number: H133N000012

Start Date: October 1, 2000

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $300,000

Abstract: The Missouri Model Spinal Cord Injury System (MOMSCIS) is committed to developing,

implementing, and evaluating innovative research that promotes independent living and community

integration among persons with spinal cord dysfunction. The two studies focus on the effect of a

consumer-directed personal assistance services training intervention on consumer satisfaction,

independent living, and community integration. The purpose of Study 1 is to develop, implement,

and evaluate the in-person Individualized Management of Personal Assistant/Consumer Teams

(IMPACT) workshop. The purpose of Study 2 is to assess whether this workshop can be implemented as effectively via video teleconferencing as in person, thereby increasing dramatically its

dissemination potential. The objectives of the studies are: (1) to determine the effect of the IMPACT

workshop on consumer satisfaction, the incidence of secondary conditions, activity, and participation

(as defined by the ICIDH-2); (2) to determine the effect of the IMPACT workshop on personal

assistant’s job satisfaction, job stress, and attrition; (3) to test for differences in outcomes between

the participants who attended the workshop in-person and those who attend the workshop via video

teleconferencing; and (4) to develop, evaluate, and refine a Web version of the interactive IMPACT

workshop. Data from this research provides valuable information for future studies seeking to document changes in personal independence and community integration. This project contributes to the

national statistics database at the University of Alabama at Birmingham.
Health and Function 2-37

Model Spinal Cord Injury Systems

New Jersey

Northern New Jersey Spinal Cord Injury System

Kessler Medical Rehabilitation Research & Education Corp.

1199 Pleasant Valley Way

West Orange, NJ 07052-1499

dtulsky@kmrrec.org

http://www.kmrrec.org/NNJSCIS/index.html

Principal Investigator: Joel A. DeLisa, MD, 973/243-6805

Public Contact: David Tulsky, PhD, Co-Investigator; Steven Kirshblum, Co-Investigator, 973/243-

6849; 973/243-6916; Fax: 973/243-6861

Project Number: H133N000022

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $345,000

Abstract: The primary purpose of the Northern New Jersey Spinal Cord Injury System (NNJSCIS)

is to generate new knowledge to improve outcomes for persons with spinal cord injury (SCI) through

the development of improved interventions and expanded service delivery options. The NNJSCIS is

a collaborative endeavor involving Kessler Medical Rehabilitation Research and Education Corporation (KMRREC), Kessler Institute for Rehabilitation (KIR), and the University of Medicine and

Dentistry of New Jersey—University Hospital. The NNJSCIS has a well-established interdisciplinary system of rehabilitation care that has been specifically designed to meet the needs of individuals

with SCI, including emergency medical services; acute care; psychological, social, and vocational

services; peer support; independent living services; community and job placement, and long-term

community follow-up and health maintenance. The research and demonstration projects include:

targeting two of the most common problems faced by persons with spinal cord injuries (i.e., pressure

ulcers and urinary tract infections) with new advances in treatments and technology; recognizing that

obesity in persons with SCI is not only a health issue but impacts community access; health literacy;

and the identification of other health and psychosocial risk factors that may have escaped detection.

The project tests the newly developed Clinical Practice Guidelines along with research into the effect

of managed care in order to yield important findings that assist consumers, health care providers,

insurance providers, and policy-makers in devising optimal treatment. This project contributes to the

national statistics database at the University of Alabama at Birmingham.
2-38 Health and Function

Model Spinal Cord Injury Systems

New York

Mount Sinai Spinal Cord Injury Model System

Mount Sinai School of Medicine

Department of Physical Medicine and Rehabilitation

One Gustave L. Levy Place

Box 1240

New York, NY 10029-6574

audrey.schmerzler@mssm.edu

http://www.mssm.edu/rehab/spinal

Principal Investigator: Kristian T. Ragnarsson, MD

Public Contact: 212/659-9360; Fax: 212/348-5901

Project Number: H133N000027

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $320,000

Abstract: The Mount Sinai Spinal Cord Injury Model System (MS-SCI-MS) of the Department of

Rehabilitation Medicine of Sinai Hospital (MSH) and the Mount Sinai School of Medicine (MSSM)

in New York City, provides comprehensive care to meet the diverse needs of persons with spinal

cord injury (SCI) in its catchment area. There are four components of the system: (1) comprehensive

clinical care; (2) research (center-specific and contributions to the national statistics database); (3)

dissemination, education, and training; and (4) injury prevention. The comprehensive clinical program stresses interdisciplinary care, and employs a primary team model to enhance coordination

among caregivers. Comprehensive outpatient rehabilitation services and long-term follow-up at

MSH are also included. Rehabilitation services include a high-tech wheelchair and seating system

evaluation program, a lower extremity functional electrical stimulation ergometry program, psychosocial services, extensive vocational rehabilitation services, a consumer-directed program to promote

community reintegration (DO IT!), and a women’s peer group. Specialty medical and surgical

services available include a fertility program for males with ejaculatory dysfunction, intrathecal

pumps for treatment of spasticity, upper extremity reconstruction, and cutting edge technology. A

preventive healthcare demonstration project for screening and early intervention of secondary medical conditions is included as a collaborative effort of the MS-SCI-MS and the Spinal Cord Damage

Research Center at the Bronx Veterans Affairs Medical Center. The research program of MS-SCIMS consists of three studies relevant to one of the most disabling secondary conditions of SCI:

chronic pain: (1) meta-analyses of pain reports and pain treatments; (2) a prospective study of pain;

and (3) a trial of a novel therapy, intrathecal magnesium sulfate, alone and in combination with

morphine, for relief of chronic intractable pain. This project contributes to the national statistics

database at the University of Alabama at Birmingham.
Health and Function 2-39

Model Spinal Cord Injury Systems

Pennsylvania

Demonstration of a Model Spinal Cord Injury System Center

Thomas Jefferson University

Jefferson Medical College

132 South 10th Street

375 Main Building

Philadelphia, PA 19107-5244

mary.call@mail.tju.edu

http://www.jeffersonhealth.org/spinalcordcenter

Principal Investigator: John F. Ditunno, Jr., MD, 215/955-5580

Public Contact: Mary Call-Patrick, RN, Project Coordinator, 215/955-6579; Fax: 215/955-5152

Project Number: H133N000023

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $370,000

Abstract: The Regional Spinal Cord Injury Center of Delaware Valley (RSCICDV) is a comprehensive program of coordinated patient care, education, and research activities. The RSCICDV: (1)

conducts on-site research focusing on improved outcome measures to meet Federally established

objectives; (2) refines and improves the RSCICDV’s operational services and demonstration

projects; and (3) conducts four development projects including development of a spinal cord injury

(SCI) Web site, implementation of an SCI Care Path, development of a Pressure Sore Program, and

employing persons with SCI through hireAbility. The on-site research includes four experiments: (1)

validation of the Walking Index of Spinal Cord Injury (WISCI) scale in a clinical setting for severity

and hierarchical ranking; (2) validation of WISCI scale for elements of a disability measure for

distance, speed, and endurance into WISCI levels; (3) demonstration that the WISCI scale is responsive to change in a clinical trial setting; and (4) demonstrate consumer preference for walking. The

four development projects include: (1) improved access to information via the Web site; (2) implementation of a critical pathway for more efficient heathcare delivery; (3) increased employment and

advancement of employment through hireAbility; and (4) increased monitoring of pressure sores and

strategies for prevention. This project contributes to the national statistics database at the University

of Alabama at Birmingham. This project participates in the NIDRR Scholars program, providing

motivated undergraduates with internship experience in disability research.
2-40 Health and Function

Model Spinal Cord Injury Systems

Texas

Model Spinal Cord Injury System

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Avenue

Houston, TX 77030

khart@bcm.tmc.edu

Principal Investigator: R. E. Carter, MD, 713/797-5910 (V)

Public Contact: Karen A. Hart, PhD, 713/797-5946 (V); 713/797-5790 (TTY); Fax: 713/797-5982

Project Number: H133N50007

Start Date: September 1, 1995

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 95 $373,000; FY 96 $373,000; FY 97 $373,000; FY 98 $373,000;

FY 99 $373,000; FY 00 (No-cost extension through 10/31/00)

Abstract: Within a system-wide research environment, this multidisciplinary service system: (1)

demonstrates and evaluates services and the costs and benefits of those services, (2) demonstrates

and evaluates the application of improved methods and equipment, (3) demonstrates methods of

community outreach and education, and (4) participates in national studies of the benefits of a spinal

cord injury (SCI) service system. This system addresses projects related to: violence-related spinal

cord injuries, maximizing interactions with independent living centers, substance abuse among

individuals with SCI, disability and rehabilitation-related problems of people with SCI from minority backgrounds, the role of families and personal advocacy in successful community reintegration,

and adoption of the SCI systems model of care into the practice of regular health care delivery. This

system also houses the database of all presentations and educational materials developed by the

nationwide network of Model SCI System centers. This project contributes to the national statistics

database at the University of Alabama at Birmingham.
Health and Function 2-41

Model Spinal Cord Injury Systems

Texas

Texas Model Spinal Cord Injury System

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Street

Houston, TX 77030-3408

khart@bcm.tmc.edu

http://www.bcm.tmc.edu/pm&r/sci/research/modelsystem

Principal Investigator: William H. Donovan, MD, 713/797-5912

Public Contact: Karen A. Hart, PhD, 713/797-5946 (V); 713/797-5790 (TTY); Fax: 713/797-5982

Project Number: H133N000004

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $375,000

Abstract: The Texas Model Spinal Cord Injury System (TMSCIS) provides services along the entire

continuum of care from emergency medical service to long-term follow-up and management of

secondary conditions. TMSCIS performs an analytic longitudinal investigation of disability models

to explore and quantify the interaction among various individual and environmental variables.

TMSCIS operationalizes the Institute of Medicine model disability utilizing state-of-the-art measurement techniques and comprehensive statistical approaches to test hypotheses about dynamic interrelations of persons with spinal cord injury (SCI) and their environment. This investigation involves

following newly injured persons with SCI for two years after injury. Measurements are taken of preinjury life conditions, enabling processes, as well as, personal, psychological, and physical environments. This project contributes to the national statistics database at the University of Alabama at

Birmingham. In addition, the project develops and tests theoretically derived structural models from

the national database and other existing data sources.
2-42 Health and Function

Model Spinal Cord Injury Systems

Virginia

VCU Model Spinal Cord Injury Center

Virginia Commonwealth University

School of Medicine

Department of Physical Medicine & Rehabilitation

Box 980661

Richmond, VA 23298-0677

wmckinley@hsc.vcu.edu

http://views.vcu.edu/html/pmr/sci

Principal Investigator: William O. McKinley, MD

Public Contact: Michael Tewksbury, 804/828-0861; Fax: 804/828-5704

Project Number: H133N000015

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $310,000

Abstract: This project develops and implements a Model Spinal Cord Injury System at Virginia

Commonwealth University/Medical College of Virginia (VCU/MCV), with a concentrated emphasis

on employment. Researchers monitor and assess the impact of interventions, advancing technology,

and policy changes on employment following spinal cord injury (SCI). Collaborating partners

include VCU/MCV’s Rehabilitation Research and Training Center on Workplace Supports, the

Virginia Department of Rehabilitation Services, and the other SCI Model Systems delivery of care.

Additionally, the project partners with the Mid-Atlantic Paralyzed Veterans Association in several

training, dissemination, and other mutual outreach activities. Research studies involve use of the

national statistics database, a major employment policy study across 18 states, a major study with the

Virginia Department of Rehabilitation Services on employment outcomes (e.g., earning histories),

and an evaluation of technology training on employment outcomes. Involvement of SCI mentors in

training new vocational mentors with SCI is also an important component of the work. This project

contributes to the national statistics database at the University of Alabama at Birmingham.
Health and Function 2-43

Model Spinal Cord Injury Systems

Washington

Northwest Regional Spinal Cord Injury System

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98105-6613

rehab@u.washington.edu

http://depts.washington.edu/rehab/sci

Principal Investigator: Diana D. Cardenas, MD, 206/543-8171

Public Contact: Fax: 206/685-3244

Project Number: H133N000003

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $330,000

Abstract: The University of Washington’s Northwest Regional Spinal Cord Injury System

(NWRSCIS) serves a critical mass of patients with spinal cord injury (SCI) and has all the necessary

disciplines to provide state-of-the-art medical, surgical, and rehabilitation care. NWRSCIS has four

objectives: (1) examine interventions to improve outcomes in the preservation or restoration of

function or the prevention and treatment of secondary conditions; (2) contribute to the national

database; (3) maintain specialized clinical programs; and (4) develop and maintain education programs for consumers and families, especially for those who belong to minority and disadvantaged

groups. In addition, the Center maintains an SCI Consumer Resource Manual and provides for the

widespread dissemination of research and demonstration findings. This project contributes to the

national statistics database at the University of Alabama at Birmingham.
2-44 Health and Function

Model Spinal Cord Injury Systems

Wisconsin

Model Construct for Community Integration in SCI

Medical College of Wisconsin

Spinal Cord Injury Center

Froedtert Memorial Lutheran Hospital

9200 West Wisconsin Avenue

Milwaukee, WI 53226

denmaim@aol.com; ifiedler@post.its.mcw.edu

http://www.mcw.edu/spinal

Principal Investigator: Dennis Maiman, MD; Irma Fiedler, PhD, 414/259-3645; 414/805-7345

Public Contact: Traci Tymus Brown, CRC, CDMS, Project Coordinator, 414/259-2109; Fax: 414/

259-7927

Project Number: H133N50024

Start Date: October 1, 1995

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 95 $373,000; FY 96 $373,000; FY 97 $373,000; FY 98 $373,000;

FY 99 $373,000; FY 00 (No-cost extension through 4/30/01)

Abstract: This project emphasizes and integrates the major research areas relating to spinal cord

injury (SCI) and community integration through a series of research and demonstration projects. The

individual projects contribute to overall federal objectives and address problems identified with the

research, demonstration services, or data collection aspects of the Model SCI System. In addition to

the core work of the project, researchers engage in six research and demonstration projects and six

collaborative projects. The core is focused on the integration of the Wisconsin Model Spinal Cord

Injury Center with its multiple components and data compilation requirements. The two main foci of

the research and demonstration projects are: enhancement of seamless community integration and

quality of life for people with spinal cord injuries, and assessment of clinical and educational SCI

programs. Resource and demonstration projects include: The Changing Sexuality Needs of Minority

Individuals with Spinal Cord Injury, Substance Abuse and Spinal Cord Injury, Barriers to Community Adjustment in Individuals with Spinal Cord Injury, Development of Assistive Devices for

Individuals with Spinal Cord Injury, Wisconsin Spinal Cord Registry: A Public-Private Partnership,

and Children at Risk for Violence: A Demonstration Project. Dissemination of the results of the

demonstration projects, the participation in database collection, and national collaborative studies

integrate the role of SCI management in Wisconsin. This project contributes to the national statistics

database at the University of Alabama at Birmingham.
Health and Function 2-45

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Alabama

Traumatic Brain Injury Care System

University of Alabama/Birmingham

Spain Rehabilitation Center

619 - 19th Street South, SRC529

Birmingham, AL 35249-7330

novack@sun.rehabm.uab.edu

http://www.uab.edu/tbi

Principal Investigator: Thomas Novack, PhD

Public Contact: 205/934-3454; Fax: 205/975-4691

Project Number: H133A980010

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000

Abstract: The Traumatic Brain Injury Care System (UAB-TBICS) maintains and improves a costeffective, comprehensive service delivery system for people who incur a traumatic brain injury, from

the moment of injury across the life span. The project: studies the course of recovery and outcomes

following the delivery of the coordinated system of care; investigates alternative methods of service

delivery to people with TBI, exploring emerging technologies to promote recovery; examines key

predictors of rehabilitation outcome and costs of care; and places emphasis on home- and community-based activities as well as interventions that maximize community reintegration following TBI.

The project establishes and maintains linkages with emergency medical service agencies throughout

the state, state vocational rehabilitation and long-term follow-up programs, clinically oriented research activities within the UAB-TBICS itself, and other clinical research programs being conducted

at Model TBI Systems nationwide. This project contributes to the national statistics database at the

Kessler Medical Rehabilitation Research and Education Corporation.
2-46 Health and Function

Model Traumatic Brain Injury Systems

California

A Comprehensive System of Care for Traumatic Brain Injury

Santa Clara Valley Medical Center (SCVMC)

Medical Staff Corporation

950 South Bascom Avenue, Suite 2011

San Jose, CA 95128

tbisci@tbi-sci.org

http://www.tbi-sci.org

Principal Investigator: Jeffrey Englander, MD, 408/885-2000

Public Contact: Tamara Bushnik, PhD, 408/295-9896, ext. 16; Fax: 408/295-9913

Project Number: H133A70018

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 97 $345,000; FY 98 $345,000; FY 99 $345,000; FY 00 $345,000

Abstract: This program is a comprehensive, interdisciplinary system of care whose rehabilitation

program empowers consumers through a clinical program, community services for consumers,

several important research studies, and dissemination of information. Clinical services and research

studies include: (1) the community Vocational Task Force on vocational issues in brain injury; (2)

the Peer Support Program for families and consumers from time of injury through community

integration; (3) the Mild Brain Injury (MBI) program, which disseminates an educational brochure to

all entering the emergency department who have sustained injuries to the head and those who have

sustained an MBI (those who have residual complaints are evaluated for subtle deficits); and (4) a

quarterly community education series focusing on TBI topics requested by customers. The project

operates in collaboration with several community agencies. This project contributes to the national

statistics database at the Kessler Medical Rehabilitation Research and Education Corporation.
Health and Function 2-47

Model Traumatic Brain Injury Systems

Colorado

Rocky Mountain Regional Brain Injury System

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80110

kgerhart@craighospital.org

http://www.craighospital.org

Principal Investigator: Gale Whiteneck, PhD, 303/789-8204

Public Contact: Ken Gerhart, 303/789-8308; Fax: 303/789-8441

Project Number: H133A980020

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000

Abstract: The Rocky Mountain Regional Brain Injury System (RMRBIS) operates a comprehensive

system of care, conducts research, and disseminates the results. Collaborating programs include

Swedish Medical Center and St. Anthony Hospital, two highly regarded Level I and Level II trauma

centers and acute care facilities, and community-based programs that range from Colorado’s Medicaid Waiver Program, to private vocational services, to programs for the arts and recreation, that offer

lifelong services, ongoing follow-up, and an enhanced quality of life to people with TBI and their

families. The project conducts 13 distinct yet complementary research projects to: (1) compare the

various treatment pathways occurring in Colorado; (2) evaluate the effectiveness of vocational and

other community-based services; (3) assess the potential of a pharmacological intervention for

improving memory; (4) develop and validate neuropsychological tests; (5) improve outcome predictions through the quantification of MRI results and environmental factors; (6) examine the influence

of funding alternatives; and (7) seek a better understanding of the roles of violence and substance

abuse in TBI. This project contributes to the national statistics database at the Kessler Medical

Rehabilitation Research and Education Corporation. This project participates in the NIDRR Scholars

program, providing motivated undergraduates with internship experience in disability research.
2-48 Health and Function

Model Traumatic Brain Injury Systems

Georgia

Georgia Model Brain Injury System (GAMBIS)

Emory University

Center for Rehabilitation Medicine

1441 Clifton Road Northeast, Suite 215

Atlanta, GA 30322

anthony_stringer@emory.org

Principal Investigator: Anthony Stringer, PhD

Public Contact: 404/712-5667; Fax: 404/712-5668

Project Number: H133A980028

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000

Abstract: The Georgia Model Brain Injury System (GAMBIS) has the capacity to follow approximately 45 percent of the moderate to severe brain injury cases expected annually in metropolitan

Atlanta, and combines the academic resources of Emory University and the Crawford Research

Institute of Shepherd Center, Inc., with the clinical resources inherent in six trauma centers, two

inpatient rehabilitation programs, and multiple postacute and subacute rehabilitation pathways.

Project activities include: comparisons between the efficacy, cost-effectiveness, and cost per qualityadjusted life year for patients in home-based and facility-based subacute care; outcome comparisons

between TBI patients grouped by injury severity to determine optimal matches between patients and

service delivery methods; the impact of violence as a cause of injury on cost and outcome within all

postacute treatment pathways; studying the efficacy of telecommunications technology and a consumer-directed Clubhouse Program in supporting community and vocational reentry; and the role of

traditional (e.g., injury severity, level of insurance benefits) and novel (e.g., progesterone level,

apolipoprotein E genotype) predictors of outcome and subjective well-being following TBI. This

project contributes to the national statistics database at the Kessler Medical Rehabilitation Research

and Education Corporation.
Health and Function 2-49

Model Traumatic Brain Injury Systems

Massachusetts

Traumatic Brain Injury Model System

Spaulding Rehabilitation Hospital

125 Nashua Street

Boston, MA 02114

toneilpi@lynx.dac.neu.edu

http://www.spauldingrehab.org/tbi.html

Principal Investigator: Mel B. Glenn, MD

Public Contact: Therese O’Neil-Pirozzi, ScD, 617/573-2456; Fax: 617/573-2469

Project Number: H133A980034

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000

Abstract: This Traumatic Brain Injury Model System provides a comprehensive spectrum of care

for people with traumatic brain injury (TBI) through the collaborative effort of a complex of organizations committed to participation in a variety of research and demonstration projects. Objectives

include demonstrating a comprehensive model system of care for individuals with TBI; investigating

the efficacy of alternative service delivery; identifying and evaluating interventions that can improve

vocational outcomes and community integration; developing key predictors of rehabilitation outcome, including subjective well-being; determining the relationship between cost, interventions, and

outcomes; and examining the implications of violence as a cause of TBI. The six research studies of

the project include: (1) responsiveness of the Community Integration Questionnaire and the Supervision Rating Scale; (2) attributes of dysarthric speech as a predictor of successful use of voice recognition software for computer access; (3) efficacy of a group model for including family members in

the community integration of the patient with TBI; (4) efficacy of community skills group outpatient

therapy; (5) palmtop computer technology as a prospective memory aid for individuals with TBI

living in the community; and (6) posttraumatic apathy: analysis, pharmacologic treatments, and

outcomes. This project contributes to the national statistics database at the Kessler Medical Rehabilitation Research and Education Corporation. This project participates in the NIDRR Scholars program, providing motivated undergraduates with internship experience in disability research.
2-50 Health and Function

Model Traumatic Brain Injury Systems

Michigan

Southeastern Michigan Traumatic Brain Injury System

Wayne State University and Rehabilitation Institute of Michigan

Department of Physical Medicine and Rehabilitation

261 Mack Boulevard

Detroit, MI 48201

debwood@semtbis.org

http://www.tbims.org

Principal Investigator: Robin Hanks, PhD, 313/745-9736

Public Contact: Deborah Wood, 313/745-1188; Fax: 313/966-7502

Project Number: H133A70021

Start Date: January 1, 1998

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 97 $344,989 (SEMTBIS); $125,000 (TBI National Database);

FY 98 $344,989 (SEMTBIS); $125,000 (TBI National Database); FY 99 $344,989 (SEMTBIS);

$125,000 (TBI National Database); FY 00 $344,989 (SEMTBIS)

Abstract: This project maintains and enhances an existing model system of care and conducts

collaborative and local research projects including the following: (1) a multicenter collaborative

project with existing Traumatic Brain Injury Model Systems entitled “Post-Acute Service Delivery:

Needs, Interventions, Costs and Outcomes;” (2) the local project “Evaluation of an Enhanced Community-Based Vocational Training Program Serving Economically Disadvantaged Persons with

TBI;” (3) rehabilitation outcome, addressed through a combination of multicenter collaborative

research and dissemination projects, as well as several local projects; (4) a multicenter collaborative

project, “Length of Stay in Inpatient Rehabilitation: Does It Make a Difference?;” (5) a local project,

“Managed Primary Care for Persons with Traumatic Brain Injury: Prediction of Long-Term Medical

Care Utilization and Costs;” and (6) a multicenter collaborative project led by this project: “Implications of Violence as a Cause of TBI on Cost, Functional Outcome, and Long-Term Community

Integration.” The project previously managed the TBI National Database Center and continues to

contribute to the statistical database at the Kessler Medical Rehabilitation Research and Education

Corporation. Additional goals include coordinating research and dissemination activities with other

NIDRR TBI grantees to optimize research output, minimize redundancy of effort, and engage in

collaborative dissemination.
Health and Function 2-51

Model Traumatic Brain Injury Systems

Minnesota

Model Brain Injury System

Mayo Medical Center

Rochester, MN 55905

moessner.anne@mayo.edu

http://www.mayo.edu/model-system

Principal Investigator: James F. Malec, PhD

Public Contact: Anne Moessner, 507/255-5109; Fax: 507/255-4641

Project Number: H133A980036

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000

Abstract: This Model System enables people with traumatic brain injury (TBI) in the Minnesota

region to participate fully in their families, communities, school, and work. The System’s 14 studies

and projects include: (1) providing the appropriate continuum of care for the approximately 500

people with TBI admitted yearly through the Mayo Level I Trauma Center through an existing Case

Coordination system that facilitates access to hospital- and community-based services for community reintegration; (2) determining the long-term outcomes of postacute rehabilitation pathways; (3)

evaluating key outcome predictors, including apolipoprotein and genotype; (4) examining the implications of violence for outcome, costs, and special rehabilitation needs; (5) demonstrating innovative

postacute rehabilitation and vocational interventions and evaluating their effectiveness through

experimental and quasi-experimental designs; (6) further evaluating specialized TBI vocational

services at the Mayo Brain Injury Program that result in almost 75 percent of the people served in

community-based placements; (7) extending Annegers’s previous population-based epidemiological

studies of TBI to determine the effect of severity and type of TBI (e.g., violent versus nonviolent) on

outcomes and costs; and (8) developing and testing cost models using prospective and retrospective

data and national Model TBI System data. This project contributes to the national statistics database

at the Kessler Medical Rehabilitation Research and Education Corporation.
2-52 Health and Function

Model Traumatic Brain Injury Systems

Mississippi

Traumatic Brain Injury (TBI) Model System

of Mississippi (TBIMSM)

Mississippi Methodist Rehabilitation Center

Brain Injury Program

1350 East Woodrow Wilson Center

Jackson, MS 39216

marks@mmrcrehab.org

http://www.mmrcrehab.org

Principal Investigator: Mark Sherer, PhD

Public Contact: 601/364-3448; Fax: 601/364-3452

Project Number: H133A980035

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000

Abstract: The Traumatic Brain Injury Model System of Mississippi (TBIMSM) collaborates with

other Model TBI System projects, and performs a program of research and demonstration, dissemination, and collaborative projects. Issues addressed are of particular importance to people with

traumatic brain injury (TBI) who live in rural areas of Mississippi. The System contributes to improved understanding of methods of service delivery, interventions to improve vocational outcomes

and community integration, extended job coaching, rural versus urban outcomes, electrophysiology,

awareness, depression, delirium after TBI, key predictors of rehabilitation outcomes, the relationship

of cost of care to functional outcomes, and special implications of TBI caused by violence. Two

demonstration projects involve a Seizure Clinic and a Spasticity Clinic. Findings are disseminated to

people with TBI, their families and significant others, rehabilitation professionals, and makers of

public policy both locally and nationally. TBIMSM solicits support, feedback, and guidance from

people with TBI, family members, significant others, advocacy agencies, and service agencies to

ensure that the projects address the needs and concerns of these people and organizations. The

system is a collaboration between the Mississippi Methodist Rehabilitation Center and the University of Mississippi Medical Center. This project contributes to the national statistics database at the

Kessler Medical Rehabilitation Research and Education Corporation.
Health and Function 2-53

Model Traumatic Brain Injury Systems

Missouri

Missouri Model Traumatic Brain Injury System (MOMBIS)

University of Missouri/Columbia

Department of Physical Medicine and Rehabilitation

DC046.00

One Hospital Drive

Columbia, MO 65212

mombis@health.missouri.edu; nossamanl@health.missouri.edu

http://www.hsc.missouri.edu/~mombis

Principal Investigator: Brick Johnstone, PhD, 573/882-6258

Public Contact: Larry Nossaman, 573/884-2899; Fax: 573/884-2902

Project Number: H133A980008

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $344,999; FY 99 $344,999; FY 00 $344,999

Abstract: This model system, based in central Missouri, provides a continuum of traumatic brain

injury (TBI) care to an underserved and understudied population: communities that are primarily

rural. The project also completes a series of innovative research programs and contributes to the

national statistics database at the Kessler Medical Rehabilitation Research and Education Corporation. MOMBIS develops a model system of care that: (1) investigates the efficacy of alternative

methods of service-delivery interventions after inpatient rehabilitation discharge and after other

postacute treatment pathways; (2) identifies and evaluates interventions using emerging technology

that can improve vocational outcomes and community integration; (3) develops predictors of rehabilitation outcome, including subjective well-being, at hospital discharge and at long-term follow-up;

(4) examines the relationships among cost of care, specific treatment interventions, and functional

outcomes; and (5) examines implications of TBI caused by violence on treatment interventions,

rehabilitation costs, and long-term outcomes. Individual MOMBIS projects are evaluating the efficacy of a community-based support system, the efficacy of a partial weight-bearing gait retraining

program, and predictors of vocational and financial success for clients of the state Vocational-Rehabilitation Division. MOMBIS is also piloting research in: (1) the transportation challenges of individuals with TBI in rural areas and how those challenges affect outcomes, (2) the actual amount and

source of public and private financial assistance being received by individuals with TBI, and (3) the

relationship between challenges in access to environmental resources and outcomes for individuals

with TBI living in rural areas of Missouri.
2-54 Health and Function

Model Traumatic Brain Injury Systems

New Jersey

Northern New Jersey Traumatic Brain Injury System (NNJTBIS)/

NIDRR TBI Model Systems National Database

Kessler Medical Rehabilitation Research and Education Corporation

1199 Pleasant Valley Way

West Orange, NJ 07052

tbi@kmrrec.org

http://www.kmrrec.org

Principal Investigator: Mark V. Johnston, PhD, Project Director, TBIMS; Mitchell Rosenthal, PhD,

Project Director, TBI National Database

Public Contact: 973/243-2015; Fax: 973/243-6963

Project Number: H133A980030

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $343,381; FY 99 $343,381; FY 00 $343,381 (NNJTBIS); $250,000

(National TBI MS Database)

Abstract: The Northern New Jersey Traumatic Brain Injury System (NNJTBIS) is a comprehensive

set of projects designed to improve the quality of care for people with traumatic brain injury (TBI) in

New Jersey and to answer selected research questions. In both research and development projects,

the NNJTBIS emphasizes the interplay of medical, neuropsychological, social, and economic factors. Three small randomized clinical trials include: an intervention program to train caregivers to

manage behavior problems in the home or other natural settings, a program of cognitive remediation

and cognitive-behavioral therapy for people with TBI living in the community, and an improvement

to a cognitive remediation program involving enhanced choice by the person with TBI. Other research addresses issues of: how to improve outcome measures by incorporating the expressed values

and perceptions of people served, financial issues and costs, the implications of violence in the

etiology of TBI, substance abuse, and consequences of delay or refusal of Medicaid coverage for

people with severe TBI injuries. Demonstration projects fill gaps in vocational rehabilitation in New

Jersey by providing augmented work trials and education of vocational rehabilitation counselors

regarding TBI, develop trial cognitive remediation and social support tools for the Internet, and

educate emergency room personnel regarding mild TBI. Educational offerings for people with TBI,

their families, and professionals are provided through conferences, retreats, talks, support groups,

and development of a TBI resource center. Local advisory boards advise System staff, and plans

include a task force to improve the system of care in New Jersey. The project currently manages the

national statistics database for the Model TBI System projects. Additional goals include coordinating

research and dissemination activities with other NIDRR TBI grantees to optimize research output,

minimize redundancy of effort, and engage in collaborative dissemination. This project participates

in the NIDRR Scholars program, providing motivated undergraduates with internship experience in

disability research.
Health and Function 2-55

Model Traumatic Brain Injury Systems

North Carolina

The Carolinas Traumatic Brain Injury Rehabilitation

and Research System (CTBIRRS)

Charlotte-Mecklenburg Hospital Authority

Charlotte Institute of Rehabilitation

1100 Blythe Boulevard

Charlotte, NC 28203

ssaunders@carolinas.org

http://www.carolinas.org

Principal Investigator: Flora Hammond, MD

Public Contact: 704/355-1502; 704/355-4330; Fax: 704/355-7903

Project Number: H133A980025

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000

Abstract: The Carolinas Traumatic Brain Injury Rehabilitation and Research System (CTBIRRS)

improves the lives of people with newly acquired traumatic brain injury (TBI) through a comprehensive service delivery system. Research studies investigate: (1) the effectiveness of alternatives to a

comprehensive outpatient brain injury day program; (2) the use of a Community Transition Coordinator to improve access to services and enhance community reintegration; (3) the novel use of an

electronic personal organizer as a memory aid; (4) the predictability of functional outcomes, quality

of life, and cost of care for those with TBI; (5) the impact of TBI on spouses and significant others;

(6) the efficacy and cost of serial casting versus ultrasound with weight bearing for contractures; (7)

epidemiologic characteristics, rehabilitation costs, and outcomes of violence-induced TBI compared

to nonviolent TBI incidence; (8) the costs and outcomes of depression following violence-induced

TBI versus nonviolent TBI; and (9) the outcomes of those who suffer severe TBI who do not receive

inpatient rehabilitation. Five of the studies involve collaboration with other NIDRR Model Systems.

In addition, researchers collaborate with a non-Model-Systems NIDRR grantee to address TBIrelated issues. CTBIRRS disseminates research findings via telemedicine; a Web site; local and

national committees, programs, conferences, and peer-reviewed publications; and provides free

computer and Internet access for people with disabilities. This project contributes to the national

statistics database at the Kessler Medical Rehabilitation Research and Education Corporation.
2-56 Health and Function

Model Traumatic Brain Injury Systems

Ohio

Ohio Regional Traumatic Brain Injury Model System

Ohio Valley Center for Brain Injury Prevention and Rehabilitation

Department of Physical Medicine and Rehabilitation

Dodd Hall

480 West Ninth Avenue

Columbus, OH 43210

lamb-hart.1@osu.edu

http://www.ohiovalley.org

Principal Investigator: John D. Corrigan, PhD, 614/293-3830

Public Contact: Gary Lamb-Hart, 614/293-3802; Fax: 614/293-8886

Project Number: H133A70032

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 97 $344,975; FY 98 $344,975; FY 99 $344,975; FY 00 $344,975

Other funding: FY 00 $342,247 (Center for Substance Abuse Treatment (CSAT) at the Substance

Abuse and Mental Health Administration (SAMSA)); $41,339 (RRTC on Drugs and Disability,

Wright State University); $82,678 (Ohio Rehabilitation Services Commission)

Abstract: The Ohio Regional Traumatic Brain Injury Model System serves a population of two

million people living in 21 urban and rural counties in central and southern Ohio. It provides specialized care from emergency evacuation through community integration and lifelong living. The project

is a collaborative effort of the Ohio State University Medical Center, OhioHealth’s Grant Medical

Center, and the Ohio Valley Center for Brain Injury Prevention and Rehabilitation. This project

contributes to the national statistics database at the Kessler Medical Rehabilitation Research and

Education Corporation.
Health and Function 2-57

Model Traumatic Brain Injury Systems

Oregon

Oregon Model Traumatic Brain Injury System

Oregon Health Sciences University

3181 Southwest Sam Jackson Park Road, L472

Portland, OR 97201-3098

chesnutr@ohsu.edu

http://www.ohsu.edu/som-neurosurgery/head

Principal Investigator: Randall M. Chesnut, MD

Public Contact: 503/494-8311; Fax: 503/494-7161

Project Number: H133A980027

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000

Abstract: This model system compares treatment and outcomes among people with traumatic brain

injury (TBI) cared for within the model system versus those who follow alternative care paths. The

sample: (1) includes trauma system patients who remain in Portland and those who return to rural

homes after discharge, allowing for a comparison of care paths as determined by environment; (2)

assesses outcomes based on the type and extent of care by evaluating payer programs by level and

type of funding; and (3) develops and validates two key predictors of outcome: a measure of acute

care and a social adjustment scale. This understanding of outcomes as determined by care path

(model versus alternative), environment (rural versus urban), and payer program (level of funding) is

used to address the three primary needs of Oregon residents with TBI and their families: information, access, and quality. Ancillary demonstration projects implement and evaluate caregiver training

and home-based multidisciplinary rehabilitation as an alternative to postacute treatment interventions. This project contributes to the national statistics database at the Kessler Medical Rehabilitation

Research and Education Corporation.
2-58 Health and Function

Model Traumatic Brain Injury Systems

Pennsylvania

A Model System of Brain Injury Care in the Philadelphia Region

MossRehab

1200 West Tabor Road, Korman Suite 213

Philadelphia, PA 19141-3099

jwhyte@aehn2.einstein.edu

http://www.einstein.edu/mossrehab/research

Principal Investigator: John Whyte, 215/456-5924

Public Contact: Susan S. Thomson, 215/456-5966; Fax: 215/456-5926

Project Number: H133A70033

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 97 $345,000; FY 98 $345,000; FY 99 $345,000; FY 00 $345,000

Abstract: This traumatic brain injury (TBI) Model System of Care serves people with TBI and their

families in the greater Philadelphia region. A full continuum of TBI services is provided through the

Drucker Brain Injury Center at MossRehab, using a transdisciplinary dedicated team model.

Postacute services are community-based and include a client-directed Clubhouse and an Affirmative

Business. The Model System provides extra case management and tracking to meet the needs of

enrollees, many of whom are inner-city residents with social and economic disadvantages. There is

also a strong emphasis on research. This project contributes to the national statistics database at the

Kessler Medical Rehabilitation Research and Education Corporation. In addition, 11 local and

collaborative projects address topics such as the evaluation and rehabilitation of motor control, the

effects of emerging technologies on social and vocational outcome, psychosocial factors affecting

recovery, and the clinical assessment of attention. Other research projects are concerned with the

prediction of rehabilitation costs, case mix adjustment for improved outcome prediction, and the

effects of service availability on outcome. Three consumer Advisory Boards operate to provide

feedback and quality improvement to both research and clinical programs. The Model System

project is a collaboration among MossRehab/MRRI and the trauma/neurosurgery services of Albert

Einstein Medical Center and Temple University Hospital.
Health and Function 2-59

Model Traumatic Brain Injury Systems

Texas

Traumatic Brain Injury Model System of TIRR

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Avenue

Houston, TX 77030

whigh@bcm.tmc.edu

http://www.tbims.org

Principal Investigator: Walter M. High Jr., PhD

Public Contact: 713/666-9550; Fax: 713/668-5210

Project Number: H133A70015

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $345,000; FY 98 $345,000; FY 99 $345,000; FY 00 $345,000

Abstract: This project develops and demonstrates a comprehensive, multidisciplinary rehabilitation

services model system for people with traumatic brain injury (TBI). The project: (1) investigates the

efficacy of alternative methods of service delivery interventions after inpatient rehabilitation discharge and after other postacute treatment pathways; (2) identifies and evaluates interventions,

including those using emerging technology, that can improve vocational outcomes and community

integration; (3) develops key predictors of rehabilitation outcome, including subjective well-being at

hospital discharge and at long-term follow-up; (4) determines the relationship between cost of care,

specific treatment interventions, and functional outcomes; and (5) examines the implications of

violence as a cause of TBI on treatment interventions, rehabilitation costs, and long-term outcomes.

This project contributes to the national statistics database at the Kessler Medical Rehabilitation

Research and Education Corporation. It participates in collaborative projects with other model

system programs and coordinates research efforts with other NIDRR grantees that address TBIrelated issues.
2-60 Health and Function

Model Traumatic Brain Injury Systems

Virginia

Virginia Traumatic Brain Injury Model System

Virginia Commonwealth University

Department of Physical Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0452

jmarwitz@hsc.vcu.edu

http://www.neuro.pmr.vcu.edu

Principal Investigator: Jeffrey S. Kreutzer, PhD

Public Contact: Jennifer Marwitz, 804/828-3704; Fax: 804/828-2378

Project Number: H133A980026

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $344,914; FY 99 $344,914; FY 00 $344,914

Abstract: The Virginia Traumatic Brain Injury Model System has four research projects and three

demonstration projects. The System: (1) examines the needs, outcomes, and costs of alternative

service delivery systems; (2) examines the etiology and incidence of rehospitalization in the one-tofour years following traumatic brain injury (TBI) to evaluate predictors of acute rehospitalization

and to characterize the relationship between rehospitalization and long-term outcomes; (3) investigates identification and placement practices in secondary schools and tracks educational and vocational outcomes for youth with TBI, and identifies best practices to facilitate mainstreaming and

optimal educational and vocational outcomes; (4) compares the costs of violent injury to the costs of

other causes, identifies the types and intensities of services used by victims of violence, relates the

intensity of services to payer source and other demographic information, evaluates long-term implications by assessing employment, community integration, substance abuse status, and subjective

well-being, and identifies characteristics that predispose a person to violent injury; (5) assesses

vocational outcomes in return-to-work interventions for people with mild and moderate brain injuries; (6) develops, with consumer input, a consumer education and self-advocacy workshop given

throughout the state; and (7) develops a “best practices” handbook on work supports for people with

brain injury that is field tested and disseminated via the Internet and other avenues. This project

contributes to the national statistics database at the Kessler Medical Rehabilitation Research and

Education Corporation.
Health and Function 2-61

Model Traumatic Brain Injury Systems

Washington

The University of Washington Traumatic Brain Injury Model System

University of Washington

Department of Rehabilitation Medicine

Box 356490 BB-941 Health Sciences

Seattle, WA 98195

dikmen@u.washington.edu

http://depts.washington.edu/rehab/special/bi.shtml

Principal Investigator: Sureyya S. Dikmen, PhD

Public Contact: Kathy Bell, MD, 206/685-0935; Fax: 206/685-3244

Project Number: H133A980023

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000

Abstract: The University of Washington Traumatic Brain Injury Model System operates a comprehensive, multidisciplinary Model System of Care serving people with TBI from the time of injury to

integration into the community. The System: performs innovative research and demonstration

projects; contributes to the national statistics database at the Kessler Medical Rehabilitation Research and Education Corporation; collaborates with other model system sites in addressing TBIrelated issues; and engages in dissemination activities that include professionals, people with brain

injury and their families, and the community at large. The Department of Rehabilitation Medicine at

the University of Washington Academic Medical Center, which includes Harborview Medical Center

and the University of Washington Medical Center, collaborates to conduct: a randomized, controlled

trial examining the impact of scheduled, system-initiated telephone intervention on outcome (including employment and community integration); two studies examining the state and federal costs of

TBI, and cost-effectiveness of the randomized study; two complementary studies examining early

costs and discharge decisions in violence-related TBI and the relationship among violence, rehabilitation services received, and long-term outcome; a study examining long-term outcome as a function

of alternative pathways of postacute treatment; and three demonstration projects, with two using

technology to develop community-based resources and professional communication.
2-62 Health and Function

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

Alabama

Amantadine to Improve Neurorecovery in TBI

University of Alabama/Birmingham

Spain Rehabilitation Center

619 19th Street South SRC

Birmingham, AL 35233-7330

meythaler@sun.rehabm.uab.edu

http://main.uab.edu/show.asp?durki=10809

Principal Investigator: Jay M. Meythaler, MD

Public Contact: 205/934-2088; Fax: 205/975-4896

Project Number: H133G80025

Start Date: June 1, 1998

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $121,290; FY 99 $124,567; FY 00 $121,290

Abstract: This project attempts to establish the efficacy and detrimental effects of amantadine in the

acute stages of recovery from traumatic brain injury (TBI). Because TBI is one of the most significant causes of disability to able-bodied people in the most productive period of life, this research

may reduce a significant disability and economic burden. The most common cause of TBI is highspeed transportation accidents; such accidents result in a mechanism of injury commonly described

as diffuse axonal injury, which results in a decrease in dopamine turnover in the brain, leading to

some degree of impaired initiation and attentional deficits. Research suggests that increasing dopamine turnover at the synaptic level may have a beneficial effect on recovery from brain injury. Amantadine has been the subject of considerable interest and clinical use; however, the definite beneficial

effect of amantadine on brain injury recovery has never been demonstrated. Because amantadine is

available generically, the private sector shows little interest. The study design is a double-blind,

randomized, controlled trial using well-established outcome measures, including behavioral and

cognitive measures.
Health and Function 2-63

Field-Initiated Projects (FIPs)

Alabama

Use of Propranolol to Manage Behavioral Dysfunction

and Agitation in Persons with Postacute Brain Injury

University of Alabama/Birmingham

Department of Physical Medicine and Rehabilitation

619 - 19th Street South, SRC 529

Birmingham, AL 35294-7330

meythaler@sun.rehabm.uab.edu

http://main.uab.edu/show.asp?durki=30833

Principal Investigator: Jay M. Meythaler, JD, MD, 205/934-2088

Public Contact: Alice Johnson, 205/934-9494; Fax: 205/975-4896

Project Number: H133G000072

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $123,967

Abstract: This project conducts research to confirm the empirically reported efficacy of the betaadrenergic receptor blocker propranolol in managing behavioral dyscontrol following brain injury

(BI) in the postacute phase (greater than one year). The study builds on published case reports of

propranolol’s effectiveness. It implements the first-ever randomized double-blind crossover trial of

propranolol with placebo control in 50 individuals who are more than one year post-BI, in an outpatient setting. The project establishes whether propranolol decreases the behavioral dyscontrol and

agitation commonly seen in postacute BI; despite widespread empirical use of propranolol, such

decreases have never been established conclusively. It also provides for detailed measurement of

possible neurocognitive side effects of propranolol, which were not evaluated in previous studies.

The study utilizes the Agitated Behavioral Scale (ABS) for valid and reliable measurement of agitation. The project utilizes functional brain imaging techniques to provide preliminary insights into

possible sites and mechanisms of action. If propranolol is thus documented to be useful in the

postacute BI population, functional MRI and SPECT studies exploring its mechanisms of action is

warranted.
2-64 Health and Function

Field-Initiated Projects (FIPs)

Arkansas

Developing a Rehabilitation Service Delivery Model

for Minority Farmers with Disabilities

University of Arkansas/Pine Bluff

Agricultural Economics

1200 North University Drive

P.O. Box 4913

Pine Bluff, AR 71601

mwachofi_a@vx4500.uapb.edu

Principal Investigator: Ari K. Mwachofi, PhD

Public Contact: 870/543-8532; Fax: 870/543-8543

Project Number: H133G000192

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $150,000

Abstract: This project gathers data from farmers and service providers in Arkansas, Louisiana, and

Mississippi. Using the survey data, the project constructs a model of rehabilitation service delivery

for minority farmers with disabilities based on their needs, perceptions, disabilities, and the most

effective methods of reaching and communicating with them. The main thrust of the project is active

participation by minority farmers in research and model building. Project objectives are to: (1)

identify and interview minority farm households that have members with disabilities; (2) identify

and interview nonminority farm households that have members with disabilities; (3) interview

rehabilitation counselors and county extension agents; (4) build a service delivery model based on

analyses of responses of the farmers, rehabilitation counselors and county extension agents; and (5)

disseminate model and research findings.
Health and Function 2-65

Field-Initiated Projects (FIPs)

California

Daily Living Context and Pressure Sores in Consumers

with Spinal Cord Injury

University of Southern California

Department of Occupational Science and Occupational Therapy

1540 Alcazar Street, CHP-133

Los Angeles, CA 90089-9003

http://www.usc.edu/hsc/ihp/ot

Principal Investigator: Florence Clark, PhD, OTR, 323/442-2875

Public Contact: Fax: 323/442-1540

Project Number: H133G000062

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $149,942

Abstract: This project examines the beliefs and practices underlying the activities, habits, and daily

routines of 18 ethnically diverse consumers with spinal cord injury (SCI). The intent is to document

how personality, lifestyle patterns and choices, and environmental context mutually interact within

the individually constructed lives of consumers to influence the development of pressure sores. The

problem of recurrent, medically serious pressure sores represents a key challenge to the ability of

individuals with SCI to experience a full and satisfying life. Although prior research has documented

that the development of pressure sores is in general linked to psychosocial and environmental variables, there is a need to obtain new, consumer-centered information about how pressure sores can be

minimized through personally tailored adaptive strategies that are responsive to the opportunities and

difficulties embedded in the unique sets of everyday circumstances that characterize individual lives.

A variety of data collection procedures, including participant observation as well as interviews with

consumers, their caregivers, and other associated persons, are analyzed to generate results that are

comprehensive and trustworthy. These results will be used to develop a series of applied products,

including: (1) a consumer-oriented self-help manual; (2) a set of guidelines for rehabilitation practice; and (3) a lifestyle-oriented occupational therapy treatment model. Consumer representatives

contribute to all aspects of the project to ensure that it is relevant and maximally useful to the target

population.
2-66 Health and Function

Field-Initiated Projects (FIPs)

Colorado

Marketing Health Promotion, Wellness, and Risk Information

to Spinal Cord Injury Survivors in the Community

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80110

kgerhart@craighospital.org

http://www.craighospital.org

Principal Investigator: Gale Whiteneck, PhD, 303/789-8204

Public Contact: Ken Gerhart, 303/789-8308; Fax: 303/789-8441

Project Number: H133G80011

Start Date: May 1, 1998

Length: 36 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 98 $124,995; FY 99 $124,989; FY 00 $124,803

Abstract: Building on experience gained from the RRTC in Aging with Spinal Cord Injury at Craig

Hospital, this project offers health promotion, wellness, and risk information to spinal cord injury

(SCI) survivors. Recent reports from survivors, caregivers, and researchers are demonstrating that

SCI is not the unchanging disability it was once thought to be; over time many survivors face medical complications, psychosocial concerns, and diminishing quality of life. Although many of these

adverse outcomes could be averted or lessened with active health maintenance and wellness strategies, SCI survivors in the community face a dearth of information they need to make positive

lifestyle choices. This project creates: (1) a Wellness and Risk Assessment Profile that provides

individualized SCI-specific health risk appraisals via the Internet; (2) regular health information

columns in three widely read consumer journals; (3) custom brochures targeting the prevention and

health promotion needs of SCI survivors in the community; (4) a handbook offering information

about making wise health and lifestyle choices for recently injured SCI survivors; (5) a handbook

targeting caregivers of SCI survivors; and (6) a curriculum for people who teach and provide support

to caregivers.
Health and Function 2-67

Field-Initiated Projects (FIPs)

District of Columbia

Toward a Risk Adjustment Methodology for People with Disabilities

Medlantic Research Institute

National Rehabilitation Hospital Research Center

102 Irving Street Northwest

Washington, DC 20010

gxd3@mhg.edu

http://www.nrhrc.org

Principal Investigator: Gerben DeJong, PhD

Public Contact: Olga Elizabeth Hayes, 202/466-1919; Fax: 202/466-1911

Project Number: H133G70072

Start Date: August 1, 1997

Length: 36 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 97 $124,983; FY 98 $124,401; FY 99 $91,550; FY 00 (No-cost extension

through 7/31/01)

Abstract: This knowledge dissemination project provides information to health care policy-makers

and payers that advances development of a risk adjustment system for working- and retirement-age

people with disabilities. Risk adjustment reduces the incentive for risk selection and promotes access

to needed health services. To achieve this goal, the project assembles a panel of leading experts on

risk adjustment and disability to guide the development of a consensus report that: (1) details the

state of science in risk adjustment, (2) evaluates the appropriateness of health care outcome indicators for people with physical and mental disabilities, and (3) provides a set of recommendations for

modifying and implementing risk adjustment methodologies that enhance access to health services

for people with disabilities enrolled in public sector and private sector health plans.
2-68 Health and Function

Field-Initiated Projects (FIPs)

Georgia

Aging and Adjustment After Spinal Cord Injury: A 25-Year

Longitudinal Study

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road Northwest

Atlanta, GA 30309

jennifer_coker@shepherd.org

http://www.shepherd.org/research/abstract/layabstr/l_mls.htm

Principal Investigator: J. Stuart Krause, PhD, 404/350-7551

Public Contact: Jennifer Coker, 800/582-6360; 404/350-7589; Fax: 404/355-1826; 404/350-7596

Project Number: H133G70111

Start Date: July 1, 1997

Length: 36 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 97 $124,796; FY 98 $122,475; FY 99 $121,094; FY 00 (No-cost extension

through 6/30/01)

Abstract: People are now living longer after spinal cord injury (SCI), yet only limited research has

addressed issues of aging and life adjustment after SCI. The purpose of this study is to implement

the fifth stage of data collection to a 25-year longitudinal study that has traced the course of life

adjustment after SCI over the past two decades. The unique contributions of this data collection

include: (1) inclusion of nearly 100 participants who have been injured more than 30 years, (2) firsttime longitudinal comparisons among large samples of women and racial/ethnic minorities (including more than 200 minority participants, 63 of whom are women), and (3) use of consumer advisory

groups to help to identify factors accounting for change.
Health and Function 2-69

Field-Initiated Projects (FIPs)

Illinois

Enhancement of Upper Limb Functional Recovery in Stroke

Using a Computer-Assisted Training Paradigm

Rehabilitation Institute Research Corporation

Sensory Motor Performance Laboratory, #1406

345 East Superior Street

Chicago, IL 60611

jpdewald@casbah.acns.nwu.edu

http://sulu.smpp.mwu.edu/jdewald

Principal Investigator: Julius Dewald, PT, PhD

Public Contact: 312/238-2210; Fax: 312/238-2208

Project Number: H133G80063

Start Date: August 1, 1998

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $124,992; FY 99 $124,923; FY 00 $124,957

Abstract: This study investigates use of a novel computer-assisted isometric training regime to

overcome abnormal movement synergies following hemiparetic stroke. In most stroke patients, these

synergies are reflected, in part, by the existence of abnormal coordination between the activations of

shoulder and elbow muscles. These stereotypic movement patterns found in stroke survivors are

functionally disabling and often debilitating, yet are not well understood in the rehabilitation setting.

Current neurotherapeutic approaches to the amelioration of these abnormal patterns have produced,

at best, limited functional recovery. Therefore, the objectives of this investigation are to evaluate and

demonstrate the usefulness and effectiveness of a novel static training regime to enhance the quality

of life of consumers with stroke. The effect of two training regimes on functional arm movement are

being investigated in 40 hemiparetic stroke subjects. The first protocol uses a general, classical

strengthening regimen to increase torque production in specific directions. The second approach

strengthens subjects using torque combinations that require the subject to deviate progressively from

their abnormal torque synergies. Assessment of the effectiveness of these two protocols is based on

quantitative comparisons of voluntary upper limb movements performed pre- and post-training.
2-70 Health and Function

Field-Initiated Projects (FIPs)

Illinois

The SPIRATE Project (Spinal Injury Risk Assessment

for ThromboEmbolism)

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1407

Chicago, IL 60611

d-green@nwu.edu

Principal Investigator: David Green, MD, PhD

Public Contact: 312/238-4701; Fax: 312/238-1815

Project Number: H133G990046

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $135,244; FY 00 $139,362

Abstract: The purpose of this study is to develop a risk assessment methodology to guide the intensity and duration of antithrombotic prophylaxis. The study is performed in two parts: a retrospective

analysis of 500 patients treated by the Midwest Regional Spinal Cord Injury Care System over the

past decade, and a prospective analysis of 100 patients admitted for care of spinal cord injury. In the

first part, archival data on the 500 patients is analyzed to identify risk factors for thromboembolism.

In the second part, the 100 patients all receive prophylaxis consisting of compression leggings and

Heparin, they are examined daily for clinical evidence of thrombosis, and they have bilateral contrast

venography prior to discharge. Three risk scoring systems are tested. The first is based on the retrospective study. The second is expanded to include additional factors such as functional measures and

emotional well-being assessments. A third risk scoring system, to be developed, includes the data

from the second system as well as the day-to-day changes in the symptoms recorded over the course

of the study for individual patients. The cross-generalizability of the systems is assessed, and the

final instrument is used to assign patients at high risk to more intensive prophylaxis.
Health and Function 2-71

Field-Initiated Projects (FIPs)

Illinois

Secondary Prevention Trial of Exercise and Diet

for Improvement of Physical Fitness, Independence, and Overall

Health in Adult Paraplegics

University of Illinois/Chicago

College of Health and Human Development Sciences

Department of Human Nutrition and Dietetics

M/C 517

Chicago, IL 60612

braunsch@uic.edu

Principal Investigator: Carol Braunschweig, PhD

Public Contact: 312/996-8055; Fax: 312/413-0319

Project Number: H133G990143

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $149,959; FY 00 $149,988

Abstract: This project investigates the impact of an exercise intervention coupled with nutrition

education on the strength and fitness of a sample of overweight paraplegics with chronic illnesses.

This intervention improves cardiovascular fitness and strength leading to improved independence

and improved overall health. The research objectives are to recruit adult paraplegics with chronic

disease for involvement in the program and then to compare the effects of the program on physical

fitness in participants who have completed the program to physical fitness in those participants

randomized but waiting, during the same 12 weeks, to begin the intervention. The impact of the

program is assessed using changes in strength and body composition, levels of independence, dietary

knowledge and intakes, blood pressure, the total-to-high-density lipoprotein cholesterol ratio, bone

mineral density, and fasting glucose concentrations.
2-72 Health and Function

Field-Initiated Projects (FIPs)

Louisiana

Mild Traumatic Brain Injury in High School Football

Tulane University School of Medicine

Department of Orthopaedics

1430 Tulane Avenue, SL32

New Orleans, LA 70112

gstewart@mailhost.tcs.tulane.edu

Principal Investigator: Gregory W. Stewart, MD

Public Contact: 504/588-5770; Fax: 504/584-3517

Project Number: H133G70087

Start Date: July 1, 1997

Length: 36 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 97 $122,981; FY 98 $120,525; FY 99 $122,597; FY 00 (No-cost extension

through 12/31/00)

Abstract: The goal of this multidiscipline research project is to conduct an intensive exploration of

factors related to mild traumatic brain injury (MTBI) in youth. Even with clear and specific criteria

for discriminating minor from moderate or severe brain injury, several factors may affect the reliability of MTBI classification. For accurate diagnosis, reliable observers must be present. The presence

of multiple trauma in some cases may compound and prolong the disability, and may also make it

difficult to distinguish the cause of some forms of symptomatology. The effects of alcohol or other

drugs, when present, often mimic symptoms of MTBI, further confounding its diagnosis. Given

these potential problems, Tulane University has chosen to study minor brain injury within the context of high school football. A population of young athletes participating in organized football allows

for a more controlled study, due to the fact that additional massive trauma is absent, trained individuals are present at the time of injury, and secondary complications rarely occur that further brain

injury.
Health and Function 2-73

Field-Initiated Projects (FIPs)

Maryland

Consumers’ Participation in Nursing Home Decisionmaking

Preferences and Perceptions

University of Maryland, Baltimore County

Policy Sciences Graduate Program

1000 Hilltop Circle

Baltimore, MD 21250

nanmille@umbc.edu

Principal Investigator: Nancy Miller, PhD

Public Contact: 410/455-3889; Fax: 410/455-1172

Project Number: H133G000068

Start Date: June 1, 2000

Length: 36 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 00 $149,556

Abstract: This project examines decisionmaking about long-term care, as it relates to institutional

admission and discharge, viewing these decisions as having a critical influence on the opportunities

individuals have to attain valued long-term care goals. The study explores the decisionmaking

process of a nursing home population for which little information is available—working-age residents. Current research has focused on acute care for the most part; limited attention has been given

to consumer values and preferences in long-term care and the role, if any, these play in long-term

care decisions. Specific objectives and analyses include describing the level of consumer participation in the nursing home admission decision and describing the perceived adequacy of participation

in decisionmaking by consumers.
2-74 Health and Function

Field-Initiated Projects (FIPs)

Maryland

Measuring Functional Communication: Multicultural

and International Applications

American Speech-Language-Hearing Association

10801 Rockville Pike

Rockville, MD 20852

dpaulbrown@asha.org

http://www.asha.org

Principal Investigator: Diane Paul-Brown, 301/897-5700, ext. 4297

Public Contact: Carol Caperton, 301/897-5700, ext. 4231; Fax: 301/897-7354

Project Number: H133G70055

Start Date: May 1, 1997

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 97 $125,000; FY 98 $125,000; FY 99 $125,000; FY 00 (No-cost extension

through 4/30/01)

Abstract: The long-term objective of this project is to improve the quality of life for adults with

communication disabilities by expanding and validating an assessment tool for multicultural and

international populations. Assessments can then be made regarding communication functions and

needs, and rehabilitation can be individualized to optimize the person’s ability to communicate in

their natural environments. Reliable communication skills are a requisite for individuals to achieve

their social, educational, and vocational potentials, and for patients to understand and participate in

their care and recovery. Activities of this project include: (1) development of a measure of quality of

communicative life; (2) validation of the extended American Speech-Language-Hearing Association

Functional Assessment of Communication Skills for Adults with multicultural groups including

African Americans, Asian Americans, Caucasian, Hispanic, and Native Americans; (3) validation

with various populations with communication disorders such as those caused by brain injury, stroke,

Alzheimer’s disease and related dementias, and acquired neurological disorders; and (4) validation in

other English-speaking countries.
Health and Function 2-75

Field-Initiated Projects (FIPs)

Massachusetts

The Parenting Options Project: A Development Project

for Parents with Psychiatric Disabilities

University of Massachusetts Medical School

Department of Psychiatry

55 Lake Avenue North

Worcester, MA 01655

joanne.nicholson@umassmed.edu

http://www.umassmed.edu/pop

Principal Investigator: Joanne Nicholson, PhD

Public Contact: Jonathan Clayfield, 508/856-8721; Fax: 508/856-8700

Project Number: H133G70079

Start Date: July 1, 1997

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 97 $125,000; FY 98 $124,408; FY 99 $124,671; FY 00 (No-cost extension

through 6/30/01)

Abstract: The purpose of this project is to develop new rehabilitation techniques focusing on parents with psychiatric disabilities, an emerging population whose needs often have been ignored by

rehabilitation specialists and mental health service providers. Existing parent education programs

often are based on traditional clinical models developed for children at risk of child abuse, or models

developed for parents without disabilities. Because consumers are not active participants in program

development, existing services often are irrelevant to parents with psychiatric disabilities, and may

present barriers to parents’ participation. No parent skills training model has been developed with

systematic input from all stakeholders, and no goal-setting or assessment tool exists for this significant domain of adult functioning. Employing participatory action research (PAR) strategies, the

project’s goals are to: (1) develop an education and skills training curriculum for parents with psychiatric disabilities, (2) develop a goal-setting and assessment tool for parents and related professionals, and (3) evaluate the PAR development process.
2-76 Health and Function

Field-Initiated Projects (FIPs)

Michigan

Repetitive Intensive Training Exercise: Effect on Upper Extremity

Motor Function in Spasticity

University of Michigan

Department of Physical Medicine and Rehabilitation

Wolverine Tower, Room 1056

3003 South State Street

Ann Arbor, MI 48109-0042

ehurvitz@umich.edu

Principal Investigator: Edward Hurvitz, MD

Public Contact: 734/936-7200; Fax: 734/936-6121

Project Number: H133G000058

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $149,854

Abstract: Using motor control testing techniques, this project studies the effect of a repetitive,

intensive training intervention on upper limb function. It investigates whether a program of repetitive, intensive training exercises designed to improve motor coordination leads to greater improvement in motor performance than either a group receiving a more typical frequency of intervention or

a control group receiving a socialization intervention. A further goal is to determine if evidence

exists of carry-over once the intervention is terminated. The study includes 36 subjects between the

ages of 6 and 15 who have upper extremity spasticity of cerebral origin.
Health and Function 2-77

Field-Initiated Projects (FIPs)

Minnesota

Effect of Motor Learning Procedures on Brain Reorganization in

Subjects with Stroke

University of Minnesota

Program in Physical Therapy

Box 388 Mayo

Minneapolis, MN 55455

carey007@tc.umn.edu

Principal Investigator: James Carey, PhD

Public Contact: 612/626-2746; Fax: 612/625-7192

Project Number: H133G80041

Start Date: July 1, 1998

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $105,969; FY 99 $108,461; FY 00 $99,178

Abstract: This project determines whether elements of motor learning can promote brain reorganization and recovery of function in individuals with stroke. Two interventions have been shown to be

effective in helping people recover from stroke: “forced use” of the weak side and electrical stimulation. Investigators have hypothesized that these treatments may unmask dormant motor centers or

improve synaptic effectiveness, but no evidence has been forthcoming. The project involves two

experiments: (1) subjects with stroke receive 20 training sessions at a finger movement tracking task

in which they are forced to process the perceptual motor information mentally and learn to respond

accurately, and (2) different subjects with stroke receive 20 days of electrical stimulation to the weak

forearm muscles. For both experiments, changes in finger function are measured with tracking and

manual dexterity tests. Neuroplastic changes in the brain are measured with functional magnetic

resonance imaging. This project may show for the first time that physical rehabilitation procedures

may stimulate beneficial reorganization of the brain following stroke and invite further experiments

to optimize treatments.
2-78 Health and Function

Field-Initiated Projects (FIPs)

Missouri

Creating Permanent Behavioral Health Access for Rural Missourians

with TBI: Teleconferencing Application for Improved Services

University of Missouri/Columbia

DCO-46.00

One Hospital Drive

Columbia, MO 65212

schoppl@health.missouri.edu

http://www.hsc.missouri.edu/~telerehab

Principal Investigator: Laura Schopp, PhD

Public Contact: 573/882-2290; Fax: 573/884-4540

Project Number: H133G80033

Start Date: July 1, 1998

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $104,462; FY 99 $111,129; FY 00 $83,015

Abstract: This project offers one-on-one training of community mental health providers via teleconferencing sessions, and uses information learned from these sessions to create specialized training

manuals, brochures, and workshops that synthesize issues regarding traumatic brain injury (TBI)

behavioral health. Community reentry after TBI carries a host of physical, emotional, social, and

vocational challenges for patients and families. In response to these challenges, behavioral health

care is a central component in the rehabilitation process. Rural residents with TBI receive behavioral

health services while in acute rehabilitation programs, but often are unable to access follow-up

services in their local rural communities due to lack of coordination among inpatient and outpatient

service providers. A permanent service structure of providers with competency in TBI adjustment

and rehabilitation is desperately needed in rural areas. Services offered through this project are

integrated among the adult inpatient rehabilitation, the post-rehabilitation recovery, and the extended

outpatient adaptation and community reintegration periods of TBI adjustment. The project offers the

educational tools to all rural mental health providers across the state, and institutes a permanent rural

TBI behavioral health service structure.
Health and Function 2-79

Field-Initiated Projects (FIPs)

New Hampshire

Developing and Evaluating an Interactive Tool to Support

Literacy Learning in Adolescents with Severe Speech

and Physical Impairments

University of New Hampshire

62 College Road

Morrill Hall

Durham, NH 03824

karene@cisunix.unh.edu

Principal Investigator: Karen Erickson, PhD; David Koppenhaver, PhD

Public Contact: Karen Erickson, PhD, 603/862-4274; Fax: 603/862-2174

Project Number: H133G990501

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 98 $124,755; FY 99 $124,755; FY 00 $124,988

Abstract: This project creates a Web-based tool, the Adolescent Literacy Learning Link (ALLLink), that provides adolescents with Severe Speech and Physical Impairments (SSPI) with an

innovative learning environment. ALL-Link features age-appropriate reading and writing activities

that are theoretically grounded in inclusive models of comprehension and composition that apply

equally to people with and without disabilities. Projected outcomes of ALL-Link development

include: (1) successful development and implementation of an innovative and interactive literacylearning Web site for adolescents with SSPI and their teachers; (2) wide dissemination of the site,

and parallel or related materials for classrooms without Internet access; and (3) project management

that efficiently provides target groups with increased access to and use of the Web site, related

materials, and project findings.
2-80 Health and Function

Field-Initiated Projects (FIPs)

New Hampshire

Project PATH (Promoting Access, Transition, and Health)

University of New Hampshire

Recreation Management and Policy

Hewitt Hall, Room 105

Durham, NH 03824-3585

jrsable@cisunix.unh.edu

Principal Investigator: Janet Sable, PhD, 603/862-3401

Public Contact: Jill Gravink, 603/862-0070; Fax: 603/862-2722

Project Number: H133G000150

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $149,996

Abstract: This project performs a randomized, controlled trial of Project PATH (Promoting Access,

Transition, and Health), a community-based health promotion wellness program for people with new

spinal cord injuries (SCIs). This health-promoting program involves a variety of interventions

including wellness education, an individualized fitness program, recreation skill development with

family and friends, community accessibility and advocacy, and peer advising. Working in conjunction with consumers, family, friends, and health and rehabilitation professionals, Project PATH is

designed to empower people with new SCIs to make prudent and appropriate use of recreation and

leisure resources and in that way, to reduce the incidence and intensity of some the most prevalent

and destructive secondary conditions of SCI: e.g., pressure sores, upper respiratory and urinary tract

infections, and depression. The project is a coordinated effort among the University of New Hampshire, Northeast Passage, a group of private proprietary rehabilitation hospitals, a private, nonprofit

hospital, university-based research, and the New England Regional SCI Center.
Health and Function 2-81

Field-Initiated Projects (FIPs)

New Hampshire

Hippocampal Dysfunction Following TBI: A Functional and

Volumetric MRI Study of Memory Loss and Recovery

Dartmouth Medical School

DHMC

1 Medical Center Drive

Lebanon, NH 03756

thomas.w.mcallister@dartmouth.edu

http://synapse.hitchcock.org

Principal Investigator: Thomas W. McAllister, MD

Public Contact: Molly B. Sparling, 603/650-7552; Fax: 603/650-5842

Project Number: H133G70031

Start Date: May 1, 1997

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $125,000; FY 98 $124,995; FY 99 $124,999; FY 00 (No-cost extension

through 10/31/00)

Abstract: For people with traumatic brain injury (TBI) and their caregivers, one of the most prominent and disabling of the numerous traumatic brain injury sequelae is loss of memory; abnormalities

of hippocampal function and structure underlie these memory deficits and mechanisms of loss and

recovery. This project: (1) tests the hypothesis that an abnormal activation in the hippocampal

formation (HF) and temporal neocortex serves as the central neural substrate of disordered anterograde memory shortly after TBI, (2) relates recovery of memory functioning to normalization of

temporal-hippocampal activation pattern 12 months after TBI, and (3) characterizes the relationship

between abnormalities in hippocampal function as measured by functional MRI and changes in

hippocampal volume.
2-82 Health and Function

Field-Initiated Projects (FIPs)

New Hampshire

Catecholaminergic Modulation of Working Memory in Traumatic

Brain Injury: An fMRI Study of the Effects of D2 Dopaminergic and

Alpha-2 Adrenergic Agonistics

Dartmouth College

DHMC

Department of Psychiatry

1 Medical Center Drive

Lebanon, NH 03756-0001

thomas.w.mcallister@dartmouth.edu

http://synapse.hitchcock.org

Principal Investigator: Thomas W. McAllister, MD, 603/650-5824

Public Contact: Molly B. Sparling, 603/650-7552; Fax: 603/650-5842

Project Number: H133G000136

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $150,000

Abstract: This project determines the role of dopaminergic (DA) and alpha-2 adrenergic (A2A)

mechanisms in the memory deficits experienced after a traumatic brain injury (TBI). Many of the 1-2

million individuals who sustain a mild-to-moderate TBI (MMTBI) each year suffer deficits in

working memory in the first several weeks after the injury. This project uses neurocognitive and

fMRI measures in two populations, one with normal WM (healthy controls), and one with low

working memory capacity (individuals with MMTBI) to: (1) characterize baseline working memory

deficits in two domains (verbal and spatial) within one month of MMTBI, and (2) test and compare

the ability of DA and A2A agonists to ameliorate working memory deficits in the two domains

within one month of MMTBI. The study predicts that relative to healthy controls, individuals with

MMTBI have greater deficits in verbal and spatial working memory, show greater improvement in

working memory while on D2 and A2A agonists, and that DA and A2A agonists result in different

profiles and degrees of working memory improvement. Furthermore, relative to controls, the fMRI

of individuals with MMTBI should show less activation associated with low and high working

memory load conditions, should normalize when acquired while on DA and A2A agonists, and

should show selective prefrontal increased activation in response to increased working memory load.
Health and Function 2-83

Field-Initiated Projects (FIPs)

New York

Functional, Physiologic, and Immunologic Outcomes of Quantitative

Progressive Exercise Rehabilitation of the Lower Extremities in

Juvenile Arthritis: A Pilot Study

State University of New York (SUNY) at Buffalo

Department of Occupational and Rehabilitation Sciences

515 Kimball Tower

Buffalo, NY 14214

nfisher@buffalo.edu

Principal Investigator: Nadine Fisher, EdD

Public Contact: 716/829-3141; Fax: 716/829-3217

Project Number: H133G70156

Start Date: June 1, 1997

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $124,994; FY 98 $124,999; FY 99 $124,999; FY 00 (No-cost extension

through 5/31/01)

Abstract: This project determines the effects of muscle exercise rehabilitation on juvenile arthritis

(JA) using quantitative measurement of functional, physiological, immunological, and biochemical

outcomes of Quantitative Progressive Exercise Rehabilitation (QPER). JA is the most common of

the rheumatic diseases affecting children; the disability that may result from this disease has a

greater impact on lifestyle and quality of life in children than adults due to its early onset. Approximately 25 percent of all children with JA develop contractures and deformity, with 10 percent experiencing significant functional disabilities into adulthood. The goals of this project: (1) to determine

the differences affecting the lower joints, between normal children and those with JA, with respect to

their functional, physiologic, biochemical, and immunologic responses to exercise; (2) to evaluate

the efficacy and effects of a previously published muscle exercise program developed in the laboratory involving QPER with JA; and (3) to investigate the biochemical and immunologic changes

occurring as a result of exercise testing and the QPER program. Assessment of the impact on disease

activity, symptoms, and a variety of functional outcome parameters is planned following completion

of the program and 12 months later.
2-84 Health and Function

Field-Initiated Projects (FIPs)

New York

Acupuncture as an Adjunctive Treatment in Stroke Rehabilitation

Beth Israel Medical Center

Center for Health and Healing

245 Fifth Avenue, 2nd Floor

New York, NY 10016

sshiflet@chpnet.org

Principal Investigator: Samuel C. Shiflett, PhD, 646/935-2244

Public Contact: Fax: 646/935-2273

Project Number: H133G000120

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $149,556; FY 00 $149,343

Abstract: The purpose of this research is to design and evaluate the efficacy and safety of acupuncture in ways that may be beneficial, in addition to standard rehabilitation, in restoring and improving

functional recovery of stroke survivors. The project directly addresses the medical, cognitive, and

psychological sequelae of stroke. The following acupuncture issues are addressed: (1) which acupuncture points and model to use, (2) when to start acupuncture, and (3) electroacupuncture. The

project also compares acupuncture with and without electrical stimulation in stroke treatment. The

aim of the study is to use rigorous research methods to determine: (1) whether acupuncture has a

beneficial effect on activities of daily living, motor and cognitive functioning, and quality of life in

post-stroke survivors, above and beyond standard rehabilitation; and (2) if so, whether the length of

time after stroke, before acupuncture is begun, affects the extent to which acupuncture is effective,

and what the optimal time to begin acupuncture therapy would be. In addition, it is important to

determine whether there is any benefit to initiating acupuncture treatment in stroke survivors who are

well past the subacute stage, and who have apparently reached a plateau in their recovery.
Health and Function 2-85

Field-Initiated Projects (FIPs)

New York

Community Reintegration and Quality of Life Following Traumatic

Brain Injury

Mount Sinai Medical School

One Gustav Levy Place, Box 1240

New York, NY 10029

marcel.dijkers@mssm.edu

Principal Investigator: Marcel Dijkers, PhD

Public Contact: 212/659-8587; Fax: 212-348-5901

Project Number: H133G990221

Start Date: July 1, 2000

Length: 12 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 00 $194,711

Abstract: This project increases understanding of community reintegration (CI) and quality of life

for people with traumatic brain injury (TBI), and develops instruments that can be used in future

research. CI refers to a return to the mainstream of community life, and again becoming an active

and contributing member of one’s family and society. When people with TBI, their families, and

professionals in rehabilitation discuss quality of life following TBI, they consider home and community roles and activities, rather than the impairments or disabilities resulting from the injury. The best

currently available instrument, the Community Integration Questionnaire (CIQ) has serious limitations regarding the measurement of all aspects of CI in a comprehensive, reliable, and sensitive

manner. This project: (1) produces a new version of the CIQ, and assesses its validity and reliability;

(2) develops norms for the new CIQ, for subgroups defined by age, gender, and racial/ethnic group;

(3) creates a life-satisfaction measure specific to people with TBI, and assesses its validity and

reliability; (4) investigates the relationship between CI and subjective well-being; (5) describes the

CI and quality of life of TBI survivors, with a focus on severity of injury, age, gender, socioeconomic status, and racial and ethnic group differences; and (6) disseminates the instruments and other

results to people with TBI and their families, professionals, policy-makers, and researchers.
2-86 Health and Function

Field-Initiated Projects (FIPs)

New York

The Impact of Managed Care on Rehabilitation Services and

Outcomes for Persons with Spinal Cord Injury

Mount Sinai School of Medicine

One Gustave Levy Place, Box 1240

New York, NY 10029

marcel.dijkers@mssm.edu

Principal Investigator: Marcel Dijkers, PhD

Public Contact: 212/659-8587; Fax: 212/348-5901

Project Number: H133G990220

Start Date: July 1, 2000

Length: 12 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 00 $168,769

Abstract: This project examines the impact of managed care on rehabilitation services and outcomes

for people with spinal cord injury (SCI). The study analyzes demographic, medical, functional,

community integration, life satisfaction, and service delivery data collected from Model Systems

projects to determine how managed care is altering the acute and rehabilitative management of SCI

and how it affects short- and long-term outcomes, such as functional status and community integration. Objectives include: (1) describing the pathways of newly injured people with SCI through the

health care system, from injury to stable community residence: acute care, rehabilitation care (including inpatient-acute, subacute, day hospital, and outpatient), home care, and readmissions for

complications; (2) assessing the impact of managed care on these pathways: determining whether

managed care patients differ from those with more traditional health insurance in terms of services

received (providers, services, durations); and (3) assessing the effect of various pathways on the

outcomes for this patient population at one and two years after injury in functional, medical, psychological, and health services utilization. The project team disseminates findings to consumers, managed care and other payer organizations, policy-makers, and SCI professionals using a variety of

mechanisms. Findings are expected to contribute to the redesign of the SCI Model Systems National

Database to make it correspond optimally to the organization of health and rehabilitative services in

the 21st century.
Health and Function 2-87

Field-Initiated Projects (FIPs)

New York

Interventions to Improve Memory in Patients with Multiple Sclerosis

State University at Stony Brook

Health Science Center T12-020

Department of Neurology

Stony Brook, NY 11784-8121

Principal Investigator: Lauren B. Krupp, MD, 631/444-8119

Public Contact: Pat Melville, RN, 631/444-8164; Fax: 631/444-1474

Project Number: H133G990058

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 99 $147,304; FY 00 $147,816

Abstract: This project: (1) tests the efficacy of interventions, specifically targeting cognitive functioning, in patients with Multiple Sclerosis (MS); and (2) uses a novel outcome measurement that

may be more sensitive and ecologically valid than existing measurements. The experiments determine the efficacy of donepezil therapy and glucose administration for enhancing memory functioning, two interventions that are extremely well-tolerated and have been demonstrated to be effective

for improving memory and other aspects of cognitive functioning in several populations. Verbal

memory is the most common area of impairment in people with MS, and therefore a verbal memory

task is the primary outcome measure. Secondary outcome measures assessing other aspects of

cognitive function (i.e., nonverbal memory, conceptual thinking, processing speed) may also be

improved with intervention.
2-88 Health and Function

Field-Initiated Projects (FIPs)

Ohio

The Physiologic Basis of Functional Electrical Stimulation on Muscle

Atrophy in Acute Spinal Cord Injury

Ohio State University

Physical Medicine and Rehabilitation

Dodd Hall

480 West Ninth Street

Columbus, OH 43210

mysiw.1@osu.edu

Principal Investigator: W. Jerry Mysiw, MD

Public Contact: 614/293-3801; Fax: 614/293-3809

Project Number: H133G80100

Start Date: May 1, 1998

Length: 36 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 98 $125,000; FY 99 $125,000; FY 00 $125,000

Abstract: This study characterizes the changes in muscle mass, morphology, and histochemistry in

the first 6-7 months following acute spinal cord injury (SCI) and explores the impact of early

reinstitution of muscle contraction on prevention of musculoskeletal atrophy. Muscle contractions

are accomplished through the application of functional electrical stimulation (FES) induced cycle

ergometry, but this study is not designed to develop FES technology. Rather it leads to a better

understanding of the effect of FES-induced isotonic muscle contraction with dynamic force on the

musculoskeletal changes known to occur after acute SCI. It also defines the dose-response relationship of FES-induced workloads on muscle mass and quality. Finally, the study begins to explore the

mechanisms for the observed changes through characterization of both systemic growth hormone

and insulin-like growth factors and local insulin-like growth factor changes over the six-month FES

cycle ergometry training program. A better understanding of the factors associated with the development of musculoskeletal atrophy occurring after acute spinal cord injury should lead to the development of better rehabilitation and pharmacologic interventions directed at preventing these secondary

impairments of SCI.
Health and Function 2-89

Field-Initiated Projects (FIPs)

Oregon

Traumatic Brain Injury Rehabilitation: The Argentina Project

Oregon Health Sciences University

School of Medicine

3181 Southwest Sam Jackson Park Road, L472

Portland, OR 97201-3098

chesnutr@ohsu.edu

http://www.ohsu.edu/som-neurosurgery/head

Principal Investigator: Randall Chesnut, MD

Public Contact: 503/494-8311; Fax: 503/494-7161

Project Number: H133G000154

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $149,905

Abstract: This project compares a cohort of 200 traumatic brain injury (TBI) patients from Argentina with a matched sample of 200 cases from the National TBI Model Systems Database. The

Neurotrauma Group of the Argentina Society of Intensive Medicine (SATI) has instituted, at a group

of trauma hospitals in Argentina, a level of TBI acute care equal to that found in U.S. hospitals.

However, TBI patients in Argentina are discharged from this excellent acute care to no further

formal treatment. This affords an opportunity to test two groups of TBI survivors who have equivalent levels of acute care but radically different postacute rehabilitation care. In the U.S. sample, all

cases have had at least postacute, inpatient rehabilitation. Some have had outpatient treatment as

well. Patients in both groups are case-matched for major predictive variables and are compared with

respect to short- and long-term mortality and morbidity, to investigate the influence of postacute care

on outcome. Additionally, the influence of acute care management practices on outcome will be

evaluated and regression analysis will be used to establish the major predictive variables in this

patient population. This project is the first to address integrated TBI management under the conditions of significant resource limitations that exist in many areas of the world.
2-90 Health and Function

Field-Initiated Projects (FIPs)

Texas

Health Promotion for Women Aging with Disability

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

Center for Research on Women with Disabilities

3440 Richmond Avenue, Suite B

Houston, TX 77046-3403

mnosek@bcm.tmc.edu; rhughes@bcm.tmc.edu

http://www.bcm.tmc.edu/crowd

Principal Investigator: Margaret A. Nosek, PhD

Public Contact: Rosemary Hughes, PhD, 713/960-0505; Fax: 713/961-3555

Project Number: H133G000226

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $149,940

Abstract: This project studies whether an intervention to improve self-efficacy and connectedness

improves health-promoting behaviors, which is related to improved physical and psychological

health. The research is based on two hypotheses: First, regarding the effectiveness of the intervention: women aging with physical disabilities who participate in a health promotion workshop intervention report higher levels of connectedness and self-efficacy in disability management after the

intervention and at a three-month follow-up, than women aging with physical disabilities who do not

participate in the intervention; and second, regarding predictors of health outcomes and the mediating effect of health promoting behaviors: connectedness in social and intimate relationships and selfefficacy in disability management significantly predict health promoting behaviors, which predict

physical and psychological health outcomes among women aging with physical disabilities, when

severity of disability and socioeconomic status are controlled.
Technology for Access and Function

Rehabilitation, biomedical engineering, and assistive technology research has

produced results that have helped people with disabilities to achieve and maintain

maximum physical function, live in their own homes, attain gainful employment, and

participate in and contribute to society. NIDRR’s research addresses a broad range of

technology, including systems of public technology, such as telecommunications and

the built environment and orphan technology for individuals. The research program

also encourages universal design practices.

Contents

Rehabilitation Engineering Research Centers RERCs ......................................................................... 1

Disability and Rehabilitation Research Projects ................................................................................ 15

Field-Initiated Projects (FIPs) ............................................................................................................ 16

Small Business Innovative Research (SBIR), Phase I........................................................................ 46

Small Business Innovative Research (SBIR), Phase II ...................................................................... 60

Technology for Access and Function 3-1

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers RERCs

California

Technologies for Children with Orthopedic Disabilities

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

12841 Dahlia Street, Building 306

Downey, CA 90242

info@ranchorep.org

http://www.ranchorep.org/projects.html

Principal Investigator: Donald McNeal, PhD; Sam Landsberger, MD

Public Contact: 562/401-7994 (V); 562/803-4533 (TTY); Fax: 562/803-6117

Project Number: H133E003001

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $650,000

Abstract: The goal of this RERC is to improve the lives of children with orthopedic disabilities.

Activities include: (1) conducting research to advance the state of knowledge; (2) disseminating this

information to children and their parents, clinicians, and research investigators; (3) developing and

testing prototype devices that are useful and efficacious; (4) transferring prototypes that have proven

value to the marketplace; and (5) educating engineering students about the special needs of children

with orthopedic disabilities. The research and development program is focused on three of the most

important life activities of children: manipulation, mobility, and play and recreation. Three projects

address the manipulation needs of children with upper limb deficiencies; one documents current

fitting practices of children’s prosthetic clinics throughout North America, while a second develops

improved elbows and prehensors for young children. A third project adds a power assist to the

mobile arm support, a product developed and commercialized during the current grant period. The

mobility projects address the needs of children with cerebral palsy, spinal bifida, spinal cord injury,

muscle disease, and other chronic conditions that affect the child’s ability to ambulate. The RERC

develops lightweight orthotic components, evaluates the effectiveness of functional electrical stimulation to correct gait abnormalities in children with cerebral palsy, and determines the appropriate

time to provide children with wheeled mobility. The RERC program conducts clinical trials at

Rancho Los Amigos National Rehabilitation Center, Shriners Hospital LA, and Childrens Hospital

LA. This project participates in the NIDRR Scholars program, providing motivated undergraduates

with internship experience in disability research.
3-2 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

District of Columbia

Rehabilitation Engineering Research Center on Telerehabilitation

Medstar Research Institute

National Rehabilitation Hospital

102 Irving Street Northwest

Washington, DC 20001

mjr2@mhg.edu

Principal Investigator: Michael Rosen, PhD

Public Contact: 202/877-1932; Fax: 202/723-0628

Project Number: H133E990007

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $890,000; FY 99 $950,000; FY 00 $950,000

Abstract: This project experiments with various models of telerehabilitation for strategic populations, engages in development activities that exploit promising technologies, and focuses on all

aspects of the human-technology interface in a broad range of activities that benefit people with

disabilities. Structured to include national resources with a strong focus on outreach and dissemination activities and a broad-based set of research activities, the Center focuses on: (1) Telehomecare:

telesupport for stroke caregivers; (2) Telecoaching: enhancing job options; (3) Telemonitoring:

passive sensing of functional performance and health parameters at home using unobtrusive instrumentation; (4) Teleassessment: remote evaluation of skin health and decubiti for people with SCI at

rural hospitals and clinics using innovative technologies; (5) Telerehab Consumer Toolkit: outreach

and development activities and products; (6) Home Telerehab: interactive systems for remote delivery of therapy, assessment, teaching and demonstration at home; (7) Telecounseling and

Teleevaluation: remote psychological counseling and neuropsychological evaluation at rural clinics

and homes; (8) Behavioral Virtual Reality: investigation and training of social and attending behaviors using virtual environment technology; (9) Teleplay: therapeutic play, including embedded

teleassessment for children with disabilities; and (10) Integrating Telerehabilitation in Today’s

Health Care Marketplace. The Center also establishes National Resources activities: (1) Homecare

and Telerehabilitation Technology Center; (2) Homecare and Telerehab Education/Training Center;

(3) Virtual Library and Dissemination Center; (4) Standards, Codes, and Electronic Patient Records

(EPR); and (5) Telerehab Policy Information Center. The Center comprises three institutions: The

Catholic University of America (CUA), the National Rehabilitation Hospital (NRH); and the Sister

Kenny Institute (SKI).
Technology for Access and Function 3-3

Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center

on Prosthetics and Orthotics

Northwestern University

Rehabilitation Engineering Research Program and

Prosthetics Research Laboratory

345 East Superior Street, Room 1441

Chicago, IL 60611

reiu@northwestern.edu; d-childress@northwestern.edu

http://www.repoc.northwestern.edu

Principal Investigator: Dudley S. Childress, PhD, 312/238-6500

Public Contact: Resource Unit Help Line, 312/238-6524 (V); 312/238-6530 (TTY); Fax: 312/238-

6510

Project Number: H133E980023

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $900,000; FY 99 $900,000; FY 00 $900,000

Abstract: The Center studies human performance as assisted by prosthetic and orthotic systems,

with the aim to engineer improved prostheses and orthoses through deeper scientific understanding

of their function. Research and development activities include: (1) development of automated alignment methods for prostheses and orthoses, based on characterization of foot rocker shape during

walking; (2) development of “smart limbs” to adapt to the walking surface; (3) investigation of

shock absorption properties of the locomotor system; (4) mechanical consideration for improved

crutch ambulation; (5) studies of standard human walking; (6) determination of prosthetic foot rollover shapes; (7) examination of the effects of shoes on kinematic and kinetic parameters of gait; (8)

development of a portable, real-time, 3D gait evaluation system (3D Direct Ultrasound Ranging

System) that is able to provide estimates of walking efficiencies and quality of walking (outcomes)

using a simple technology; (9) development and delivery of validated data-gathering instruments and

a prototype database for collection, storage, and processing short- and long-term information concerning outcomes of prosthetic and orthotic (P&O) fittings; (10) development of a computer-based

visualization aid that displays prosthetic arms on the human body before the arms are fabricated, to

assist with decision making and fitting; (11) study of factors affecting reach when using a transhumeral prothesis; (12) development of humeral rotation mechanisms, particularly for persons with

bilateral trans-humeral limb loss; (13) “proof-of-concept” investigation of ankle-foot orthoses fabrication using “fast prototyping” methods; (14) advancement of the design of several P&O components and systems to technology transfer and utilization stages; (15) collaboration with the RERC on

Land Mines and others engaged in related research; and (16) publishing of work in scholarly journals, presentation at conferences, and interaction with consumers, clinicians, engineers, scientists,

and the general public through a quarterly newsletter, telephone, the Internet, and personal meetings.
3-4 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center: Improved Technology

Access for Land Mine Survivors

Physicians Against Land Mines

Center for International Rehabilitation

351 East Huron, Second Floor Annex

Chicago, IL 60611

h-casanova@nwu.edu

http://www.banmines.org

Principal Investigator: William Kennedy Smith, MD; Dudley S. Childress, PhD, 312/923-0030

Public Contact: Laura Hamilton, Project Coordinator, 312/926-0596; Fax: 312/926-7662

Project Number: H133E980031

Start Date: November 1, 1998

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 98 $850,000; FY 99 $850,000; FY 00 $850,000

Abstract: This RERC is active in research, development, and demonstration; consumer surveys;

education and training; utilization activities; technical assistance; and dissemination relating to

improved technology access for land mine survivors. To accomplish these activities, the project: (1)

maintains a database of rehabilitation service providers and assessments of current prosthetic technologies; (2) develops or adapts technical advances in the design, production, and delivery of appropriate assistive devices; (3) designs and disseminates education, training, management, and outcome

programs; (4) acts as a clearinghouse, providing researchers, educators, administrators, and funders

access to resources that have been developed to facilitate service delivery to amputees in the United

States and other countries; (5) disseminates information through an international newsletter and

international journals, telecommunications, presentations at international meetings, training programs, consultations, open discussions, and other types of communication; and (6) develops and

disseminates specific programs and products that address the needs of amputees and service providers in low-income countries where the vast majority of land mine survivors live. The RERC also

establishes an Advisory Council that includes consumers and practitioners.
Technology for Access and Function 3-5

Rehabilitation Engineering Research Centers (RERCs)

Michigan

Rehabilitation Engineering Research Center

on Ergonomic Solutions for Employment

University of Michigan

Center for Ergonomics

1205 Beal Avenue

Ann Arbor, MI 48109-1217

tja@umich.edu

http://umrerc.engin.umich.edu

Principal Investigator: Thomas J. Armstrong, PhD, 734/763-3742

Public Contact: Sheryl S. Ulin, PhD, 734/615-2683; Fax: 734/764-3451

Project Number: H133E980007

Start Date: August 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000

Abstract: This Center combines ergonomic interventions, work and worksite modifications,

assistive technologies, and medical interventions to facilitate placement of workers with disabilities,

and helps prevent development of subsequent musculoskeletal illnesses and injuries. The Model

System establishes a database to include information on a broad range of interventions and case

examples as well as procedures for assessing workers, analyzing jobs, identifying accommodation

needs, and selecting interventions, including ergonomic technologies. The comprehensive approach

involving rehabilitation medicine and ergonomics culminates in a Web-based Model System that can

be used by rehabilitation professionals, employers, consumers, and organizations.
3-6 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering Research Center on Assistive Technology

for Older Persons with Disabilities

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

515 Kimball Tower

Buffalo, NY 14214

klinman@acsu.buffalo.edu

http://cat.buffalo.edu/rerca.htm

Principal Investigator: William C. Mann, PhD

Public Contact: Susan L. Boldt, Information Coordinator, 800/628-2281 (V/TTY); Fax: 716/829-

3217

Project Number: H133E60006

Start Date: September 1, 1996

Length: 60 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 96 $500,000; FY 97 $500,000; FY 98 $500,000; FY 99 $500,000;

FY 00 $500,000

Abstract: Activities of the RERC focus on research, assistive device development, education, and

information relating to assistive technology for older people in the home and beyond the home. The

projects of the RERC fall into four major areas: (1) research: ten projects address assessments in the

home and community, issues for minority elders, highly problematic device categories, clinical trials

of effectiveness, and managed care work issues; (2) device development: six projects address automobiles, obesity, mobility, balance, stairs, and public seating; (3) education: four projects address

professional students, graduate students, and rehabilitation and aging service professionals; and (4)

information: ten projects include a “Helpful Products” series of videos and booklets, training manuals, resources for hotel and motel guests, product information, national conferences, newsletter

inserts, a World Wide Web site, monograph series, resource sourcebook, and a resource phone line.

This project participates in the NIDRR Scholars program, providing motivated undergraduates with

internship experience in disability research.
Technology for Access and Function 3-7

Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering Research Center on Technology Transfer

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

515 Kimball Tower

Buffalo, NY 14214

jimleahy@acsu.buffalo.edu

http://cat.buffalo.edu

Principal Investigator: Joseph Lane

Public Contact: James Leahy, 716/829-3141 (V); 800/628-2281 (TTY); Fax: 716/829-3217

Project Number: H133E980024

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $900,000; FY 99 $900,000; FY 00 $900,000

Abstract: This Center improves the quality of life for people with disabilities by: advancing the

methods of technology transfer through research, transferring technologies into products through

development, and facilitating the commercialization of new and improved assistive devices. These

three outcomes are accomplished through collaborations with academic, industrial, consumer, and

government stakeholders. The Center, a partnership of technical, marketing, and consumer expertise

and networks: (1) conducts research on the technology transfer process as it is applied to the field of

assistive technology, and develops, validates, and disseminates comprehensive models of technology

transfer; (2) applies the research results by implementing the technology transfer process through a

development program; (3) identifies and transfers breakthrough technologies to industry through a

demand-pull model, transferring at least three technologies annually; (4) identifies and transfers

useful new inventions to the marketplace through a supply-pull model, transferring three to five

products annually; (5) delivers training, dissemination, and technical assistance programs to stakeholders in the field; and (6) develops an on-line technology transfer course as part of the University

at Buffalo’s distance education initiative. The dissemination program includes a state-of-the-practice

conference and the development of a technology transfer program to be offered for presentation in

year three. The Center functions as an intermediary and a catalyst, improving the process while

expanding the network of stakeholders involved with the field. The end result: new and improved

assistive technology products available in the marketplace that benefit professional service providers, family members, and people with disabilities.
3-8 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering and Research Center (RERC) on Universal

Design and the Built Environment at Buffalo

State University of New York (SUNY) at Buffalo

Department of Architecture

378 Hayes Hall

Buffalo, NY 14214

arced@ap.buffalo.edu

http://www.ap.buffalo.edu/~idea

Principal Investigator: Edward Steinfeld, ArchD, 716/829-3485, ext. 329

Public Contact: Assistant Director, 716/829-3485, ext. 335; Fax: 716/829-3861

Project Number: H133E990005

Start Date: November 1, 1999

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $599,976; FY 00 $600,000

Abstract: The RERC on Universal Design and the Built Environment promotes the adoption of

universal design. The research program includes The Prototype Anthropometric Database Project, a

research database on anthropometrics of wheelchair users for application to ergonomic design, and

The Buildings in Use Project that demonstrates the benefits of universal design by comparing the

impact of buildings and elements with universal designs to buildings and elements that are not

designed to be universally accessible. Product development efforts include development of prototypes for innovative universally designed products, evaluation & testing of these prototypes, and a

Commercialization Package for each prototype to help bring it market. The Visitability Initiative will

conduct training and action-research in 8 cities to develop visitability demonstration projects is a

collaboration with Concrete Change, a consumer advocacy organization focusing on making housing

visitable for people with disabilities. The RERC’s research program also include training, curriculum

development, publication, technical assistance, and dissemination of universal design resources.
Technology for Access and Function 3-9

Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering Research Center on Hearing Enhancement

and Assistive Devices

The Lexington School for the Deaf/Center for the Deaf

Research Division

30th Avenue and 75th Street

Jackson Heights, NY 11370

info@hearingresearch.org

http://www.hearingresearch.org

Principal Investigator: Matthew H. Bakke, PhD, 718/350-3810

Public Contact: Lois O’Neil, Dissemination Coordinator, 718/350-3203 (V/TTY); Fax: 718/899-

3433

Project Number: H133E980010

Start Date: August 1, 1998

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 98 $900,000; FY 99 $900,000; FY 00 $900,000

Abstract: This RERC develops and evaluates technology to accommodate the needs of people with

hearing loss, and disseminates related information in a form that is understandable to consumers,

service providers, employers, and community leaders. These goals are accomplished by: (1) developing and evaluating improved, cost-effective technological aids for each of the target populations

identified; (2) developing and evaluating instrumentation for detecting hearing loss at an early age;

(3) providing improved access to modern telecommunications; (4) developing and evaluating specialized technology for community, home, and work environments; and (5) pursuing an active

program of dissemination and training to ensure effective utilization of assistive technology. This

project participates in the NIDRR Scholars program, providing motivated undergraduates with

internship experience in disability research.
3-10 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center

on Communication Enhancement

Duke University

Department of Surgery

Division of Speech Pathology and Audiology

Duke University Medical Center, Box 3888

Durham, NC 27710

aac-rerc@mc.duke.edu

http://aac-rerc.com

Principal Investigator: Frank DeRuyter, PhD, 919/684-6271

Public Contact: Kevin Caves, BSME, ATP, 919/681-9983; Fax: 919/681-9984

Project Number: H133E980026

Start Date: November 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $899,996; FY 99 $899,990; FY 00 $900,000

Abstract: This project uses innovative communications technologies to benefit researchers, engineers, rehabilitation service providers, developers, and users of alternative and augmentative communication (AAC) technologies. The project: (1) investigates attitudinal barriers toward technology

use by elderly people with communication disorders, their listeners, and service providers; (2)

studies the organizational strategies of adult AAC users to determine if preferences are predictive of

performance using AAC; (3) studies how to improve AAC technologies for young children with

significant communication disorders by evaluating learning demands and functional performance

(also involves development of design specifications); (4) evaluates and enhances communication rate

efficiency and effectiveness through the development of procedures and software technology that

simulates and measures the performance of AAC technologies; (5) identifies barriers to employment,

describes strategies to overcome them, documents design specifications for AAC technologies, and

describes action plans to achieve successful employment outcomes; (6) increases employment

opportunities for graduates of an employment and AAC program; and (7) develops a coordinated

program that monitors and seeks out technology developments in both commercial form and

prerelease development stages that affect the engineering and clinical AAC field.
Technology for Access and Function 3-11

Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center (RERC) on Universal

Design and the Built Environment

North Carolina State University

Center for Universal Design

219 Oberlin Road

Box 8613

Raleigh, NC 27695-8613

cud@ncsu.edu

http://www.design.ncsu.edu/cud

Principal Investigator: Molly Story, 919/515-3082

Public Contact: Cindy Crouse-Martin, 800/647-6777 (V/TTY, information requests only); 919/515-

8547 (V/TTY); Fax: 919/515-3023

Project Number: H133E990002

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $399,988; FY 00 $399,988

Abstract: The purpose of the RERC on Universal Design and the Built Environment is to improve

the accessibility and usability of the built environment and to advance the field of universal design.

The goals of the project are to: (1) increase knowledge of the complex and dynamic relationship

between the individual and the environment, including knowledge of what design features, details

and arrangements optimize the accessibility and usability of the built environment for the widest

diversity of users; (2) increase the adoption and improve the practice of universal design by the

building and product manufacturing industries; (3) increase inclusion of the universal design approach in postsecondary design curricula, and increase the number of designers and researchers

trained in universal design practices; and (4) increase awareness of and stimulate demand for universal design among builders, manufacturers, designers, human service professionals, and individuals

with disabilities and their families.
3-12 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Wheeled Mobility

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

Forbes Tower, Suite 5044

Pittsburgh, PA 15260

dhobson@pitt.edu

http://www.rerc.upmc.edu

Principal Investigator: Douglas A. Hobson, PhD; Clifford Brubaker, PhD

Public Contact: 412/647-1273 (V); 412/647-1291 (TTY); Fax: 412/647-1277

Project Number: H133E990001

Start Date: January 1, 1999

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $900,000; FY 00 $900,000

Abstract: The RERC on Wheeled Mobility investigates the use of dynamic seating for reducing

spasticity and enhancing seating comfort; investigates the biomechanical characteristics of soft tissue

related to the risk of developing pressure ulcers and the relationship between pressure measurements

and pressure ulcer incidence; develops and validates the use of outcomes measures for seating and

mobility intervention; and investigates the use of the World Wide Web as a seating decision support

tool for consumers. This project also develops and evaluates a comparative data source for use in

decision support of wheelchair selection; an interface for integrating external devices with powered

wheelchairs; wheelchair seating standards; standardized postural measures; injury prevention wheelchair technologies; and enhanced controls for powered wheelchairs.
Technology for Access and Function 3-13

Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Information

Technology Access

University of Wisconsin/Madison

Trace Research and Development Center

5901 Research Park Boulevard

Madison, WI 53719-1252

info@trace.wisc.edu

http://trace.wisc.edu/itrerc

Principal Investigator: Gregg C. Vanderheiden, PhD, 608/263-5788

Public Contact: Nancy Gores, 608/262-2309 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E980008

Start Date: June 12, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $1,350,000; FY 99 $1,350,000; FY 00 $1,350,000

Abstract: This RERC improves access by individuals with all types, degrees, and combinations of

disabilities to a wide range of technologies, including computers, ATMs, kiosks, point-of-sale devices and smartcards, home and pocket information appliances, Internet technologies (XML, XSL,

CSS, SMIL, etc.), intranets, and 3-D and immersive environments. As one component in a larger

system of consumers, researchers, industry, and policy and public agencies, the Trace Center’s

program is designed to work within the existing structure, supporting other components and coordinating its efforts to address the functioning of the whole. The program identifies strategies that can

be used by industry to broaden the user base for their standard products, so individuals with as broad

a range of abilities as possible are able to use standard products directly. Further, the Center targets

specific compatibility and interconnection standards work to ensure that people who cannot use

products directly are able to operate them using assistive technologies. The Center focuses on the use

of targeted projects and collaboration, both national and international, to carry out the research,

development, information dissemination, training, and standard-setting activities required. The

approach is intended to be flexible, forward-looking, and broad in scope, yet focused on key access

issues as defined by its consumer constituency and its research programs.
3-14 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center

on Telecommunication Access

University of Wisconsin/Madison

Trace Center, College of Engineering

5901 Research Park Boulevard, Suite 200

Madison, WI 53719-1252

info@trace.wisc.edu

http://trace.wisc.edu/telrerc

Principal Investigator: Gregg C. Vanderheiden, PhD (Trace); Judy Harkins, PhD (Gallaudet

University), 608/263-5788 (Trace); 202/561-5257 (Gallaudet)

Public Contact: Nancy Gores, 608/263-2309 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E990006

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $675,000; FY 00 $675,000

Abstract: The focus of this RERC is to identify telecommunication access barriers in current and

future technologies, work with others in the field to identify solution strategies, test them, implement

any necessary standards, and assist industry in transferring the ideas into their commercial products.

The primary areas of activity of the Center are: (1) research; (2) applied research and development;

(3) transfer and technical assistance; and (4) dissemination, education, and outreach. Technologies

being addressed include: customer premises equipment (CPE) of all types (phones, video phones,

pagers, messaging system, etc.); telecommunication systems and services (voice mail, interactive

voice response systems, etc.); network topologies; telecommunications standards; and next-generation multimedia telecommunication systems (telecollaboration, virtual meetings, etc.). The primary

focus is on making these systems directly usable by people with all types and degrees of disability. It

also includes ensuring compatibility with assistive technologies such as TTY’s, assistive listening

devices, alternative input devices, and devices with alternative displays.
Technology for Access and Function 3-15

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Georgia

Information Technology Technical Assistance and Training Center

Georgia Institute of Technology

Center for Rehabilitation Technology

490 Tenth Street

Atlanta, GA 30332-0156

ittac@arch.gatech.edu

Principal Investigator: John Goldthwaite, 404/894-0563

Public Contact: Disability and Business Technical Assistance Centers, 800/949-4232; Fax: 404/

894-9320

Project Number: H133A000405

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $1,500,000

Abstract: This project promotes widespread use of accessible and useable electronic and information technology in the home, school, and workplace. It also promotes the benefits of universal design

to technology manufacturers, product designers and engineers, technical writers, marketers, distributors, and purchasers of information technology. This collaboration of educators, researchers, and

leaders in policy, industry, and disability implements strategies for information dissemination,

training, and technical assistance on the interpretation and impact of Section 255 of the Telecommunication Act and Section 508 of the Rehabilitation Act. The Center works closely with lead federal

regulatory agencies (the Federal Communications Commission, the Access Board, the Department of

Justice, and the General Services Administration) to advance understanding and knowledge utilization of approaches to the requirements of Sections 255 and 508 through training and technical

assistance activities.
3-16 Technology for Access and Function

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

California

Powered Mobility and Young Children with Disabilities:

A Multicenter Trial to Determine the Cognitive and Coping Factors

That Predict Wheelchair Skill Level

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Rehabilitation Engineering Program

7503 Bonita Street - Bonita Hall

Downey, CA 90242

donitatefft@ranchorep.org

http://www.ranchorep.org/pm

Principal Investigator: Donald McNeal, PhD

Public Contact: Beatriz Weber, MBA, Program Coordinator, 562/401-7994 (V); 562/803-4533

(TTY); Fax: 562/803-6117

Project Number: H133G60183

Start Date: September 1, 1996

Length: 36 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 96 $124,958; FY 97 $124,973; FY 98 $124,958; FY 99 (No-cost extension

through 8/31/00); FY 00 (No-cost extension through 3/31/01)

Abstract: This project validates, in a multicenter trial, a newly developed cognitive assessment

battery for predicting a young child’s readiness for powered mobility. This is important because

research in developmental psychology asserts that the ability to move about independently is critical

to a child’s development of cognitive, social, and communication skills. Young children who are

unable to move independently are at risk for development delays. Due to limited availability of

clinical assessment instruments, it is often difficult to determine when a young child with mobility

impairments may be developmentally ready to operate a powered wheelchair. In addition, the project

expands the predictive power of this assessment instrument by adding a component to assess coping

skill (e.g., persistence, distractibility, etc.) and to explore the applicability of this battery with a new

population of children (i.e., those with cerebral palsy).
Technology for Access and Function 3-17

Field-Initiated Projects (FIPs)

California

The Effect of Ankle-Foot Orthotic Design on Hemiplegic Gait

Los Amigos Research and Education Institute, Inc. (LAREI)

P.O. Box 3500 Los Amigos Station

12841 Dahlia Street

Downey, CA 90242-4111

pklab@larei.org

Principal Investigator: Sara J. Mulroy, PhD

Public Contact: 562/401-7177; Fax: 562/803-5693

Project Number: H133G000004

Start Date: June 1, 2000

Length: 36 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 00 $149,686

Abstract: This project defines the clinical criteria for optimal orthotic prescription in persons who

have had a stroke. The study originates from the identification of significant lower extremity weakness in a recent study of recovery of walking in patients after stroke. A pilot survey of 10 patients

who had been prescribed an ankle foot orthosis (AFO) after discharge from inpatient rehabilitation

found 40 percent of the respondents were no longer using their orthosis. Reasons for the abandonment included improved walking capability, inability to don the AFO independently, and lack of

improvement in walking. The results of this pilot indicate that the orthoses are not fully meeting the

needs of this patient population. There is a need to develop criteria for orthotic prescription based on

the patient’s lower extremity strength and muscle tone. In concert with the development of definitive

prescription criteria, patients need to be provided with information as to the purpose of the orthosis

and what changes in their walking are realistically expected.
3-18 Technology for Access and Function

Field-Initiated Projects (FIPs)

California

Robust, Low-Cost, Refreshable Braille Display

SRI International

333 Ravenswood Avenue

Menlo Park, CA 94025

richard.heydt@sri.com

Principal Investigator: Richard Heydt, PhD

Public Contact: 650/859-4452; Fax: 650/859-4941

Project Number: H133G000047

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $149,930

Abstract: This project conducts research to develop a refreshable Braille cell that is inexpensive,

environmentally robust, and extensible to two-dimensional (page) Braille displays. The project

capitalizes on microelectromechanical systems (MEMS) fabrication methods and novel

electroactuation technology to make Braille cells that are significantly lower in cost than those

currently available. The purpose of the work is to establish a process for the construction of

refreshable Braille displays that is not limited to a single line of Braille characters and that creates

more affordable devices than existing refreshable displays, which often cost $5,000 or more. Goals

include: (1) demonstrating Braille dot actuation that meets essential force, response time, power

dissipation, and other requirements; (2) designing and building several prototype Braille cells; and

(3) testing the Braille cells with experienced Braille readers.
Technology for Access and Function 3-19

Field-Initiated Projects (FIPs)

California

Development of a Transitional Ortho-Therapeutic Walker

(TOTWalker) for Preschool Children with Physical Disabilities

Lucile Packard Children’s Hospitals at Stanford

Rehabilitation Technology and Therapy Center

1010 Corporation Way

Palo Alto, CA 94303-4304

christine.wright@medcenter.stanford.edu

http://www-med.stanford.edu/lpch/rec

Principal Investigator: Christine Wright

Public Contact: 650/237-9200; Fax: 650/237-9204

Project Number: H133G990103

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $149,941; FY 00 $149,978

Abstract: This project develops and evaluates a new and innovative support walker that allows

children with physical disabilities to maneuver in the indoor environments of home and school and

to approach people and manipulate objects. The Transitional Ortho-Therapeutic Walker

(TOTWalker) is designed primarily for children with cerebral palsy, traumatic brain injury, or developmental delay, who are 12 months to 5 years of age and who have no means for self-directed,

upright mobility. The TOTWalker provides a highly maneuverable and efficient means for achieving

indoor mobility. It also provides an efficient means for achieving mobility as measured by distance

and speed of travel, and increases a child’s accessibility to the environment.
3-20 Technology for Access and Function

Field-Initiated Projects (FIPs)

California

Optimizing Assistive Technology Service with Video Teleconferencing

Lucile Packard Children’s Hospitals at Stanford

Rehabilitation Technology and Therapy Center

1010 Corporation Way

Palo Alto, CA 94303-4304

judy.henderson@medcenter.stanford.edu

http://www-med.stanford.edu/lpch/rec

Principal Investigator: Judy Henderson

Public Contact: 650/237-9200; Fax: 650/237-9204

Project Number: H133G990087

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $150,000; FY 00 $149,997

Abstract: This project develops an interactive video teleconferencing (VTC) protocol to provide

expert assistive technology (AT) evaluations to individuals with significant physical and speech

disabilities and their local support teams living in rural or underserved areas. The VTC protocol

includes methods, equipment, and materials specific to the provision of augmentative communication, environmental control, and computer access evaluations to improve independent functioning in

daily living, academic settings, employment, and leisure activities. The VTC protocol is developed

during video teleconferencing evaluations by a specialized team with extensive experience in these

types of AT.
Technology for Access and Function 3-21

Field-Initiated Projects (FIPs)

California

A Refreshable Braille/Tactile Graphics Display

for Human-Computer Interaction

The Smith-Kettlewell Eye Research Institute

2138 Fillmore Street

San Francisco, CA 94115

brabyn@skivs.ski.org

http://www.ski.org

Principal Investigator: John A. Brabyn, PhD

Public Contact: 415/345-2100; Fax: 415/345-8455

Project Number: H133G990049

Start Date: April 1, 1999

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $149,998; FY 00 $149,973

Abstract: This project explores and evaluates a new concept for an electronically refreshable

Braille/tactile graphics display for people who are blind. The goal is to allow manufacturing costs an

order of magnitude less than existing displays, and ready expansion to a full page of Braille or tactile

graphics. The concept is based on heat-induced fluid phase changes to form a design with minimal

moving parts that lends itself to manufacture in arrays containing many dots rather than assembling

one dot at a time. Advantages include very low cost, the ability to assemble entire arrays in one step,

low power needs, physical compactness, easy expansion to a full page display, and reliance on

proven materials. The goals are to: (1) investigate appropriate materials and processes; (2) fabricate

and test a prototype with at least 20 Braille cells (a larger two dimensional array if time permits); and

(3) conduct user testing to establish design parameters, user acceptability, speed, and comfort.
3-22 Technology for Access and Function

Field-Initiated Projects (FIPs)

California

Optimizing the Conditions for Reading with the Periphery

of the Visual Field

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

mm@ski.org

http://www.ski.org/Rehab/macKeben

Principal Investigator: Manfred MacKeben, PhD

Public Contact: 415/345-2112; Fax: 415/345-8455

Project Number: H133G990003

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $150,000; FY 00 $150,000

Abstract: This project studies the parameters for optimal letter and word recognition using the

periphery instead of the center of the retina in people with central (foveal) vision loss. The results are

used to develop a computer program that optimizes reading off a screen after foveal vision loss. The

project uses computer displays for presentation because they allow changing the display mode and

typeface instantaneously. Font creation software is used to modify characteristics of often-confused

letters, using an objective measure of salience, and the effect can be tested immediately. This optimizes typefaces for viewing with the peripheral retina. If it improves peripheral reading from a

screen, the product is made available for printing on paper.
Technology for Access and Function 3-23

Field-Initiated Projects (FIPs)

California

The Learning and Transfer of Prosthetic Control

San Francisco State University

1600 Holloway Avenue

San Francisco, CA 94132-1700

saw@sfsu.edu

Principal Investigator: Stephen Wallace, PhD

Public Contact: 415/338-6984; Fax: 415/338-7566

Project Number: H133G000024

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $149,011

Abstract: By studying the use of a simulated body-powered upper-extremity artificial limb, this

project hopes to reduce the learning time required to use a prosthetic limb effectively and to decrease

the unusually high rejection rates for people with amputations fitted with a new prosthesis. Project

objectives include: (1) describing how people learn to control and coordinate body-powered upperextremity prostheses, by assessing tasks related to daily living, in regard to changes in movement

strategies, the rate at which learning occurs, and the degree to which changes in performance are

maintained over a retention interval; (2) understanding bilateral transfer of movement components

used to reach, grasp, transport, and apply appropriate pressure to objects; and (3) determining

whether the type of prosthesis (i.e., voluntary opening and voluntary closing) influences the rate at

which an individual achieves functional control of activities related to prosthetic manipulation. After

a thorough understanding of how people learn prosthetic control is developed, the simulator could be

successfully employed after amputation, up to prosthesis fitting, to familiarize patients with prosthesis use and control skills. Findings could also provide therapists with new strategies for training

people with amputations to regain functional independence with a newly acquired artificial limb.

Finally, the experiments contribute to the development of a theoretical knowledge base for clinical

practice.
3-24 Technology for Access and Function

Field-Initiated Projects (FIPs)

Delaware

Personalized Synthetic Speech Using ModelTalker: Development

and Evaluation

University of Delaware

Alfred I. duPont Hospital for Children

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899

bunnell@asel.udel.edu

http://www.asel.udel.edu/speech

Principal Investigator: H. Timothy Bunnell, PhD

Public Contact: 302/651-6835; Fax: 302/651-6895

Project Number: H133G990182

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $150,000; FY 00 $150,000

Abstract: This project allows a sample group of consumers with ALS to capture their own voice for

use in an experimental alternative and augmentative communication (AAC) device called

ModelTalker. The new “corpus-based” speech synthesizer will be capable of capturing voices and

producing speech that can range in quality from that of recorded natural speech to high quality

synthetic speech and produce synthetic speech that can sound like the individual, and can additionally “play back” utterances that were not actually recorded, but have been constructed (synthesized)

from bits of recorded speech. The project goals are: (1) to improve the voice capture procedures for

creating personalized voices, (2) to modify aspects of the synthesis and voice capture software to

make them more user friendly, (3) to prepare documentation and tutorial materials to allow people

who are not speech scientists to prepare their own personalized voices, and (4) to evaluate the voice

capture procedures and the synthesizer itself with one population of people who can benefit (people

with ALS). The project is developing an optimal list of utterances for talkers to record for

ModelTalker, a list that is as short as possible without compromising the quality of the resulting

synthetic speech. Once the list is optimized, the output from ModelTalker is compared to other

synthesizers commonly used in AAC devices. Based on the results of this evaluation, the list, the

ModelTalker, or both are modified as needed.
Technology for Access and Function 3-25

Field-Initiated Projects (FIPs)

Delaware

Specifying the Facilitative Effects of Animation on the Understanding

of Action Word Representatives

Center for Applied Science and Engineering

Alfred I. duPont Hospital for Children

University of Delaware

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899

mineo@asel.udel.edu

Principal Investigator: Beth A. Mineo Mollica, PhD, 302/651-6836

Public Contact: Sonja Simowitz, Project Coordinator, 302/651-6796 (V); 302/651-6794 (TTY);

Fax: 302/651-6793

Project Number: H133G990115

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $149,964; FY 00 $149,920

Abstract: Using a customized computer-based assessment protocol, this project examines the

differential ability of several types of graphics (static and animated) to convey the meaning of action

word representations. Picture-based language representations afford access to augmentative and

alternative communication (AAC) options for many individuals who otherwise would be unable to

benefit from communication enhancement approaches. Some new products in the AAC marketplace

offer consumers the feature of animation. While it has been presumed that animation would make the

meaning of verb representations more salient, this position has not been proven, and it may in fact be

the case that the complexity of the linguistic task is affected by the complexity of the representation.

Six varied representational types are investigated with children with typical development, children

with disabilities, adults with developmental disabilities, and adults with acquired cognitive disabilities. Further, the investigators attempt to determine which characteristics of action representation

positively affect performance.
3-26 Technology for Access and Function

Field-Initiated Projects (FIPs)

Delaware

An Upper Limb Orthosis for People with Muscular Dystrophy

Alfred I. duPont Institute of the Nemours Foundation

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899

trahman@nemours.org

Principal Investigator: Tariq Rahman, PhD

Public Contact: 302/651-6831; Fax: 302/651-6895

Project Number: H133G000117

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $147,970

Abstract: This project develops an orthosis that provides a full range of movement for people with

upper-limb weakness while still supporting their arms against gravity. For a person whose sensory

system is intact, the orthosis uses their sensory system to augment their residual motor ability. It

provides proprioception, an essential part of an effective interface between the human and the orthosis. Five prototypes are developed and clinical trials with twenty consumers are performed. Upon

completion of the evaluation and analysis phases, the technology is transferred to a private company.

The expected result is a relatively inexpensive, functional, and well-concealed assistive device that

provides the opportunity for educational, vocational, and social interaction for thousands of individuals with upper-extremity motor disabilities.
Technology for Access and Function 3-27

Field-Initiated Projects (FIPs)

Georgia

Telerehabilitation to Support Assistive Technology

Shepherd Center, Inc.

2020 Peachtree Road Northwest

Atlanta, GA 30309

mike_jones@shepherd.org

http://www.shepherd.org/telemed

Principal Investigator: Michael L. Jones, PhD

Public Contact: 404/350-7595; Fax: 404/350-7596

Project Number: H133G990133

Start Date: May 1, 1999

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $149,985; FY 00 $149,992

Abstract: This project explores the application of telerehabilitation to support assistive technology

(AT) and assistive technology services, implementing three activities that involve development and

testing of new methods and devices. The first component examines telerehabilitation to provide

training in the use of augmentative communication systems to individuals with significant physical

and speech disabilities. The second component explores the use of telecommunications technology

by seating and mobility specialists to provide follow-up consultation and verify setup and use of new

wheelchairs. If successful, this approach permits follow-up with consumers who cannot return to the

clinic for a follow-up clinic visit. The third component investigates the use of videoconferencing

technology to complete accessibility assessments in remote locations.
3-28 Technology for Access and Function

Field-Initiated Projects (FIPs)

Illinois

Development of a Rehabilitator for Arm Therapy After Brain Injury

Rehabilitation Institute Research Corporation

Sensory Motor Performance Program

345 East Superior Street

Chicago, IL 60611

dreinken@uci.edu

http://www.eng.uci.edu/~dreinken/djr.htm

Principal Investigator: David Reinkensmeyer, PhD

Public Contact: 949/824-5218; Fax: 949/824-8585

Project Number: H133G80052

Start Date: May 1, 1998

Length: 36 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 98 $124,117; FY 99 $122,181; FY 00 $124,939

Abstract: This project develops a self-therapy rehabilitator for the arm after hemiplegic stroke and

other types of brain injury to correct the current lack of appropriate technology. The device, called

the “Assisted Rehabilitation and Measurement (ARM) Guide,” implements a common manual

therapy technique, active assistance for reaching movements. In addition, the ARM Guide is designed to provide visual feedback of guidance forces to the user during assisted reaching. Dr.

Reinkensmeyer can be reached at the Department of Mechanical and Aerospace Engineering, 4200

Engineering Gateway, University of California, Irvine, Irvine, CA 92697-3975.
Technology for Access and Function 3-29

Field-Initiated Projects (FIPs)

Illinois

Neuromuscular Reorganization to Improve the Control

of Artificial Limbs

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1124

Chicago, IL 60611

tkuiken@rehabchicago.org

Principal Investigator: Todd A. Kuiken, MD, PhD

Public Contact: 312/238-8072; Fax: 312/238-1166

Project Number: H133G990074

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $149,900; FY 00 $149,512

Abstract: This project is concerned with improving myoelectric control of powered prostheses using

nerve-muscle grafts. Currently, people with upper limb amputations can only control one joint at a

time with myoelectric prostheses. By grafting the residual nerve endings to muscles in or near an

amputated limb, it may be possible to produce additional, independent surface electromyographic

(EMG) signals. The muscle would essentially be used as a biological amplifier of the nerve signals.

These additional myoelectric signals could be used to control multiple joints simultaneously in

externally powered prostheses. This approach has great potential for improving the functional use of

upper limb prostheses.
3-30 Technology for Access and Function

Field-Initiated Projects (FIPs)

Iowa

Training Material for Blind Computer Users

Iowa Department for the Blind

524 Fourth Street

Des Moines, IA 50309

keninger.karen@blind.state.ia.us

http://www.blind.state.ia.us/assist

Principal Investigator: Karen A. Keninger

Public Contact: 515/281-1335; Fax: 515/281-1263

Project Number: H133G990195

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 99 $149,997; FY 00 $149,993

Abstract: This project develops appropriate training materials in alternative media for computer

users who are blind and develops a self-sustaining mechanism to continue the production of independent, high-quality training material. Objectives include: (1) research, develop, evaluate, and produce

30 training packages in alternative media, each of which addresses a specific combination of screen

reader and application; (2) develop, evaluate, document, and implement five marketing strategies for

dissemination of training products; (3) develop a procedures manual detailing the strategies, procedures and operations used to develop, produce, and market training packages; (4) develop a viable

business plan for the enterprise based on research and market experience; and (5) locate appropriate

individuals and/or existing entities interested in taking over the project. As computer hardware and

software continue to evolve, computer users with visual impairments need accessible and appropriate

training material in order to keep up with the changes and remain competitive in school, at work, and

in their communities. This project ensures a continuing enterprise over the long run to meet this

critical need for appropriate training material.
Technology for Access and Function 3-31

Field-Initiated Projects (FIPs)

Kansas

The Influence of Real-Time Frequency Transposition on the

Recognition and Understanding of Speech by Adults Who Are Hearing

Impaired

Wichita State University

Communicative Disorders and Sciences

1845 North Fairmont

Wichita, KS 67260-0075

rhull@twsu.edu

Principal Investigator: Raymond Hull, PhD

Public Contact: 316/978-3271; Fax: 316/978-3291

Project Number: H133G000188

Start Date: September 1, 2000

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $129,520

Abstract: This project tests a new generation of real-time frequency transposition hearing aids. The

purpose is to compare the influence of the new devices with that of conventional hearing aids on the

recognition and understanding of speech by adults who possess the most common type of hearing

loss among adults with hearing impairments: precipitous high frequency sensorineural hearing loss.

Performance in speech recognition and speech understanding in adults who possess significant

hearing loss is compared with the performance of conventional hearing aids. The project is based on

the premise that adults who possess sensorineural hearing loss in the moderate-to-severe range

generally possess their best hearing in the lower frequencies. Audiologists attempt to take advantage

of that usable hearing when fitting them with hearing aids in order to provide the person with the

greatest advantage for the recognition and understanding of speech. However, in spite of current

technology, it becomes difficult to amplify the better low frequency hearing and also amplify sound

in the middle-to-high frequencies with enough gain to enhance the person’s hearing in that range

without discomfort or overamplification in the lower frequencies.
3-32 Technology for Access and Function

Field-Initiated Projects (FIPs)

Maryland

Development and Commercial Transfer

of a Tactile Image Printer (TIP)

International Braille Research Center

National Center for the Blind

1800 Johnson Street

Baltimore, MD 21230

mgosse@prodigy.net

Principal Investigator: T. V. Cranmer, PhD

Public Contact: Michael Gosse, PhD, 301/593-0555; Fax: 301/593-6807

Project Number: H133G80103

Start Date: July 1, 1998

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 98 $125,000; FY 99 $125,000; FY 00 $125,000

Abstract: The project designs a product that allows students, educators, and other professionals who

are blind to access a variety of graphic material such as computer screens, maps, schematics, geometry tables, organizational charts, flow charts, and line drawings. Researchers develop a device that

produces sharper, better-defined tactile images and includes lines and filled-in areas of varying

dimensions and textures. Colors can also be produced as needed or as appropriate. Developers

include the inventor, engineers, educators, publishers, and grassroots advocacy organizations, with

support from three Rehabilitation Research Engineering Centers, those on Information Access

(Trace), Blindness and Visual Impairment (Smith-Kettlewell), and Technology Transfer (SUNY/

Buffalo). The device should help people who are blind or who have visual impairments to become

active participants in the new global economy. Phases of the project include firmware development,

experimentation and testing, creation and testing of graphic material, and product and information

dissemination.
Technology for Access and Function 3-33

Field-Initiated Projects (FIPs)

Massachusetts

Closed Captioning and Audio Description: Development and Testing

for Access to Digital Television

WGBH Educational Foundation

125 Western Avenue

Boston, MA 02134

ncam@wgbh.org

http://www.wgbh.org/ncam

Principal Investigator: Larry R. Goldberg

Public Contact: Gerry Field, 617/300-3496; Fax: 617/300-3496

Project Number: H133G80050

Start Date: June 1, 1998

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 98 $125,000; FY 99 $125,000; FY 00 $125,000

Abstract: This project addresses the urgent, time-sensitive need to improve the effectiveness of

Digital Television (DTV) to deliver high-quality captioning and description services to people with

hearing or visual impairments. Digital Television (DTV) is a complete redesign of North America’s

television service, featuring a digital signal, a sharper picture, an aspect ratio resembling that of a

wide-screen movie, multiple CD-quality audio channels, and ancillary data services. This project

uses knowledge and understanding gained from research and development previously undertaken by

the WGBH Educational Foundation (among others) to design and develop prototype DTV

captioning and description processes. Project objectives are: (1) to develop and disseminate a standard data file that tests DTV systems for quality and accuracy in handling DTV captions and descriptions as they are encoded, transmitted, and decoded in accordance with accepted standards and

official minimum requirements; (2) to develop and disseminate an advanced-features data file that

tests DTV systems for quality and accuracy in handling DTV captions and descriptions as they are

encoded, transmitted, and decoded in accordance with accepted standards and with a full range of

advanced features; and (3) to evaluate the effectiveness of DTV receivers in decoding DTV captions

and descriptions and to measure implementation of advanced features.
3-34 Technology for Access and Function

Field-Initiated Projects (FIPs)

Massachusetts

Access to Convergent Media

WGBH Educational Foundation

125 Western Avenue

Boston, MA 02134

ncam@wgbh.org

http://www.wgbh.org/ncam

Principal Investigator: Larry R. Goldberg

Public Contact: Tom Wlodkowski, 617/300-3486; Fax: 617/300-1035

Project Number: H133G990105

Start Date: August 1, 1999

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $150,000; FY 00 $150,000

Abstract: This project attempts to make it possible for people who are blind or who have visual

impairments to use convergent media effectively, by influencing industry standards and developing

new media delivery technologies. “Convergent media” refers to programming and services growing

out of the intersection of broadcast and cable television, digital television, PC, and Internet technologies. The project objectives are: (1) to propose and develop standard approaches to tag, parse, and

present data so that electronic program guides and advanced services are accessible; (2) to develop

software/hardware specifications for a prototype system or systems, that enables orientation, navigation, and feedback when using electronic program guides; (3) to collaborate on development of the

prototype access system and integrate it into an alpha advanced cable set-top box; and (4) to identify

barriers to using convergent media, outline solutions, and suggest methods for carrying out such

solutions.
Technology for Access and Function 3-35

Field-Initiated Projects (FIPs)

Massachusetts

Access Solutions for Rich Media: Tools, Pathways, and Resources

WGBH Educational Foundation

CPB/WGBH National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

geoff_freed@wgbh.org

http://www.wgbh.org/ncam

Principal Investigator: Geoff Freed

Public Contact: 617/300-4223; Fax: 617/300-4223

Project Number: H133G000109

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 00 $150,000

Abstract: This project works with researchers, technology developers, Web designers, and consumers to develop, test, and disseminate access solutions for multimedia technologies. Such solutions

include streaming media, animation, graphics, and dynamic HTML—collectively known as rich

media. Access solutions developed by this project ensure that Americans who are deaf, hard-ofhearing, blind, or who have low vision are included in the telecommunication industry revolution.

Within the next five years, massive changes in on-line delivery systems will occur. Broadband

technologies delivered via cable modem, satellite, wireless and Digital Subscriber Lines (DSL) will

allow Web-delivered video, audio, graphics, and annotation to become mainstream components of

Web sites and intranets serving industry, education, commerce, and communities. The technologies

used to create and play media on the Web are maturing quickly in anticipation of this widespread

use. Without a high-profile research and development effort during these years of growth and consolidation, some forms of on-line media are likely to present a closed door to people who have

disabilities.
3-36 Technology for Access and Function

Field-Initiated Projects (FIPs)

Massachusetts

Word for Word: Developing an Enhanced Tool

for Individuals with Disabilities

Education Development Center, Inc.

Center for Family, School, and Community

55 Chapel Street

Newton, MA 02458-1060

bfollansbee@edc.org

http://www.edc.org/spk2wrt

Principal Investigator: Robert Follansbee, EdD, 617/969-7100

Public Contact: Fax: 617/969-3440

Project Number: H133G000204

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $149,998

Abstract: This project creates, documents, and tests new speech recognition technology. Tasks

include: (1) designing an innovative software product, Word for Word, that addresses the writing

needs of people with a wide range of disabilities by integrating two powerful text entry modes,

speech recognition and word prediction, in an interface based on principles of universal design; (2)

working in collaboration with Don Johnson, Inc., a leading producer of special needs software, on

the manufacture and marketing of this product, based on the prototype; (3) working in collaboration

with a producer of speech recognition software (i.e., Dragon Systems or IBM Corporation) on the

design and implementation of the proposed product based on the prototype; (4) developing materials

to support the use and dissemination of the product; and (5) testing the educational outcomes associated with the use of the product.
Technology for Access and Function 3-37

Field-Initiated Projects (FIPs)

Michigan

Direct Brain Interface for Control of Assistance Technology

University of Michigan

Physical Medicine and Rehabilitation

1500 East Medical Center Drive, Room 1C335

Ann Arbor, MI 48109-0032

silevine@umich.edu

Principal Investigator: Simon Levine

Public Contact: 734/936-7170; Fax: 734/936-7515

Project Number: H133G70120

Start Date: September 1, 1997

Length: 36 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 97 $124,993; FY 98 $124,971; FY 99 $124,933; FY 00 (No-cost extension

through 6/30/01)

Abstract: Most assistive technology interfaces are operated by some form of physical movement;

however, many people could benefit from an interface that does not require physical movement and

instead accepts commands directly from the brain. This research explores the detection and use of

event-related potentials (ERP’s) intracranially recorded from subdural electrodes to demonstrate the

feasibility of a direct brain interface for people with disabilities. In this study a direct brain interface

is defined as an interface that accepts signals directly from the brain and requires no physical movement. Work in this project is limited to signals arising from voluntary cognitive activity as opposed

to those evoked through external stimuli.
3-38 Technology for Access and Function

Field-Initiated Projects (FIPs)

New Jersey

The Use of Virtual Reality Technology for Assessment of Driving Skills

Following Acquired Brain Injury

Kessler Medical Rehabilitation Research and Educational Corporation

1199 Pleasant Valley Way

West Orange, NJ 07052

mschultheis@kmrrec.org

Principal Investigator: Maria T. Schultheis, PhD

Public Contact: 973/731-3900, ext. 2270; Fax: 973/243-6984

Project Number: H133G000073

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $116,732

Abstract: This study examines the efficacy of a virtual reality driving system (VRDS) for the assessment of driving ability in persons with acquired brain injury (ABI) and stroke. The primary

objectives are: (1) to evaluate the concurrent validity of a VR driving protocol, by comparing it to a

traditional rehabilitation-hospital-based driving evaluation; (2) to examine the effects of the addition

of complex and challenging driving factors (i.e., nighttime and traffic congestion) on driving performance within a VR environment; and (3) to elucidate the effects of demographic and medical factors

that may impede or facilitate driving performance within a VR environment. To achieve the first and

third objectives, approximately 80 participants with ABI are administered both the traditional hospital-based driving evaluation and the VRDS. To address the second objective and allow comparison

and interpretation of VRDS performance, an additional group of 20 age-and-education-matched,

healthy control subjects are administered the VRDS.
Technology for Access and Function 3-39

Field-Initiated Projects (FIPs)

New York

A Direction Finding, Beam Forming (DF-BF) Conference

Microphone System

The Lexington School for the Deaf/Center for the Deaf

Research Division

30th Avenue and 75th Street

Jackson Heights, NY 11370

bakke@hearingresearch.org

http://www.hearingresearch.org

Principal Investigator: Matthew H. Bakke, PhD

Public Contact: 718/899-8800; Fax: 718/899-3433

Project Number: H133G70122

Start Date: June 1, 1997

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 97 $125,000; FY 98 $125,000; FY 99 $125,000; FY 00 (No-cost extension

through 5/31/01)

Abstract: This project develops and evaluates a conference microphone system that is intended to

provide improved speech intelligibility in noisy and reverberant environments for people who are

hard of hearing. The microphone system also improves the accuracy of computer-assisted speech

transcription systems for people who are deaf. The system uses digital array processing techniques to

perform two discrete functions: (1) determine talker direction within a given angular resolution, and

(2) aim a superdirectional beam pattern at that talker. In instances where more than one person is

speaking at the same time, the system has the ability to activate more than one directional pattern, or

alternatively receive sound from all directions until one talker has taken the floor. Although this

device is designed specifically for people who have hearing loss, it also offers advantages to the

general population, particularly when used in teleconferencing.
3-40 Technology for Access and Function

Field-Initiated Projects (FIPs)

New York

Optimizing Posture, Trunk Control, and Reach of Wheelchair Users

Center for Rehabilitation Technology

Helen Hayes Hospital

Route 9W

West Haverstraw, NY 10993

crthhh@mindspring.com

http://www.helenhayeshospital.org/crt.htm

Principal Investigator: Stephen H. Sprigle, PhD, 845/786-4806

Public Contact: Mark Bresler, 845/786-4995; Fax: 845/786-4875

Project Number: H133G990048

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $149,489; FY 00 $149,489

Abstract: The study’s objective is to improve function via better postural support by developing

clinical guidelines and prototype devices that accommodate to the varying needs for trunk stability

and mobility throughout the day. To meet this objective, the study has two aims: (1) to determine the

effects of posture and postural supports (cushion, backrest height and supports) on the trunk control

and upper extremity function of wheelchair users, and (2) to determine if optimizing back height and

cushion type permit people to sit with an erect posture without hindering function. For wheelchair

users, balancing sufficient trunk support with adequate trunk mobility has important functional and

medical consequences. Better understanding of the posture-function relationship and improved

design concepts are needed to improve trunk control of wheelchair users. Improved control permits

stability during activities of daily living while not hindering function by restricting mobility.
Technology for Access and Function 3-41

Field-Initiated Projects (FIPs)

North Carolina

Geographic Information System Community Resource Mapping

Orelena Hawks Puckett Institute

18A Regent Park Boulevard

Asheville, NC 28806-3727

dunst@puckett.org

http://www.puckett.org

Principal Investigator: Carl Dunst, PhD

Public Contact: 828/255-0470; Fax: 828/255-9035

Project Number: H133G990132

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 99 $149,755; FY 00 $149,737

Abstract: This project develops and evaluates the use of Geographic Information System (GIS)

mapping technology as an information management system for promoting the flow of services,

resources, and supports to individuals with disabilities and their families. It studies the methods

practitioners, families, and individuals with disabilities can use to identify the individuals, programs,

organizations, etc., that constitute sources of supports and resources in the community. The GIS

System is developed in a user-friendly and community specific format that matches the ways in

which families think about community resources.
3-42 Technology for Access and Function

Field-Initiated Projects (FIPs)

North Carolina

Promoting the Practice of Universal Design

North Carolina State University School of Design

Center for Universal Design

219 Oberlin Road

Box 8613

Raleigh, NC 27695-8613

molly_story@ncsu.edu

http://www.design.ncsu.edu/cud

Principal Investigator: Molly Story

Public Contact: 303/699-8133; Fax: 303/699-4703

Project Number: H133G80060

Start Date: June 1, 1998

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $124,970; FY 99 $124,955; FY 00 $124,993

Abstract: This project promotes the practice of universal design by developing and implementing a

self-supporting product design evaluation and marketing program that responds to consumer and

industry needs. Universal design is the design of products and environments that are usable, to the

greatest extent possible, by everyone regardless of their age or ability. The critical next step toward

increasing the practice of universal design is adoption and application of its principles both by

consumers and by industry. The three objectives of this project are to improve consumers’ ability to

recognize universal design, to improve designers’ ability to meet the needs of a diverse consumer

base, and to recognize and support industry efforts to market universal design successfully. Ways

these objectives are achieved through this project include: (1) developing a set of performance

measures that reflect the Principles of Universal Design, (2) confirming the reliability of these

measures and pilot testing the evaluation program, (3) developing a plan of self-support for the

universal design evaluation program, and (4) disseminating the results to appropriate audiences. The

project develops a sound universal design program based on information gathered directly from

future users—consumers, designers, and marketers—as well as the universal design research community.
Technology for Access and Function 3-43

Field-Initiated Projects (FIPs)

Oregon

Accessibility of Personal Computers for Adults with Significant

Cognitive Disabilities: Development and Field-Testing of Assistive

Software for Personal Management

Eugene Research Institute

132 East Broadway, Suite 747

Eugene, OR 97401

tkeating@oregon.uoregon.edu

http://www.eugeneresearch.org

Principal Investigator: Thomas Keating, PhD

Public Contact: 541/342-3763; Fax: 541/342-4310

Project Number: H133G80095

Start Date: July 1, 1998

Length: 36 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 98 $124,983; FY 99 $124,979; FY 00 $124,953

Abstract: This project develops and field tests a graphically driven software application to augment

the ability of users with cognitive disabilities to schedule and manage personal activities. As conceived, the software can also serve as a cognitively accessible gateway for other functions, such as

finding out about and scheduling community events, managing a personal budget, communicating

and coordinating activities with friends, and performing household tasks. The application design is

based on pilot work with adolescents and employs a graphic interface that guides users through the

metacognitive choices implicit in detailing and scheduling activities. This involves deciding what

activity to schedule when, who is doing it, how much money is needed, where it is happening, how

to get there, what to bring, and what to wear. For each of these decisions, the user is presented with a

grid of graphic representations, each of which is some combination of personalized photo image,

symbol, text, and sound. By selecting from the images represented for each aspect of activity planning, the user constructs an entire activity and can print out and carry a personal daily schedule with

detailed reminders. Approximately 50 adults with significant cognitive disabilities are involved with

the project.
3-44 Technology for Access and Function

Field-Initiated Projects (FIPs)

Pennsylvania

The Mentor Project: Exemplary Practices for Developing Supportive

Mentor-Protégè Relationships via the Internet for People with

Significant Physical and Speech Disabilities

Pennsylvania State University

Department of Communication Disorders

217 Moore Building

University Park, PA 16802

jcl4@psu.edu

http://espse.ed.psu.edu/SPLED/McN/Mentor3/public/index.html

Principal Investigator: Janice Light, PhD

Public Contact: 814/863-2010; Fax: 814/863-3759

Project Number: H133G80044

Start Date: August 1, 1998

Length: 36 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 98 $124,806; FY 99 $124,887; FY 00 $124,555

Abstract: This project addresses two critical needs: it responds to the needs of people with a combination of significant physical and speech disabilities, including those who are members of traditionally underrepresented groups; and it investigates the use of teleconferencing technology to provide

disability-related services. People with physical and speech disabilities who use augmentative and

alternative communication (AAC) confront significant barriers in their drive to maximize educational and vocational achievement, inclusion in society, self-sufficiency, and the overall quality of

their lives. These problems are particularly acute for adolescents and young adults, especially those

who reside in rural areas or who are members of ethnic and racial minorities. The project provides

adolescents and young adults who use AAC with regular access to competent mentors with similar

disabilities who can provide encouragement, collaborative problem-solving, and information about

disability-related resources. Activities include: (1) investigating the effect of a leadership training

program, delivered via the Internet, on the acquisition, generalization, and maintenance of problemsolving strategies and mentoring skills by 30 adults with physical and speech disabilities; (2) investigating the effect of a mentor program for 30 adolescents and young adults who have physical and

speech disabilities, as well as the effect on their successful attainment of individualized educational,

vocational, social, and personal goals; and (3) developing, evaluating, and disseminating resource

materials documenting exemplary practices for the implementation and evaluation of effective

mentoring programs to be used by people with disabilities, their families, and rehabilitation professionals. Consumers with disabilities are integrally involved in planning, implementation, evaluation,

and dissemination activities of the project.
Technology for Access and Function 3-45

Field-Initiated Projects (FIPs)

Washington

Novel Prosthetic Foot Design Method to Improve Metabolic Efficiency

of BK Amputee Gait

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98195-6490

pricer@u.washington.edu

Principal Investigator: Justus F. Lehmann, MD

Public Contact: 206/543-3600; Fax: 206/685-3244

Project Number: H133G70038

Start Date: May 1, 1997

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 97 $121,550; FY 98 $125,000; FY 99 $125,000; FY 00 (No-cost extension

through 12/31/00)

Abstract: This investigation examines the concept that to use a prosthesis optimally, energy must be

stored and released over the proper time interval to meet kinetic requirements of gait. Despite recent

improvements in the materials used to construct lower limb prostheses, further improvements in

prosthetic foot design could result in increased function, endurance, improved vocational and recreational opportunities, and improved quality of life for people with below-knee amputations. The

intent of this research is to test the hypothesis that the metabolic cost of ambulation is minimized in

people with below knee amputations wearing energy restoring prostheses, when the driving frequency of oscillation (dictated by ambulation speed) matches the resonant frequency of the prosthesis (dictated by prosthesis stiffness and user mass). The hypothesis can be described another way:

when the foot contact time on the ground (dictated by ambulation speed) matches the time period

over which the prosthesis compresses and extends when it is allowed to do so in a natural or unrestrained fashion (i.e., at resonance), the energy cost is minimized. The long-term objectives of this

study are to provide a rational basis for the design of energy-storing lower limb prostheses and to

improve the function of people with lower limb amputations through increased metabolic efficiency

of ambulation.
3-46 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research SBIR Phase I

California

Multi-Lingual Web Tutorial

Delta 101 Technologies

2411 Del Pero Street

Marysville, CA 95901

dan@delta101.com

http://www.delta101.com

Principal Investigator: Daniel Presson

Public Contact: 530/743-3722; Fax: 530/743-3722

Project Number: ED-00-PO-4009

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 00 $43,000

Abstract: The goal of the project is to develop a flexible multi-language Web Based tutorial to

augment instructor lectures and lab exercises in the areas of Electronics Technology Training.

Through flexible Web tutorials, Delta 101 Technologies seeks to retain typically at-risk students by

reinforcing mathematical and technical concepts introduced in the classroom. A major question in

developing a mature multi-lingual Web Base Training Platform is to determine the effectiveness of

presenting instructional material in the multi-lingual format (is the student’s mastery level improved

and, if so, is the student’s level of English comprehension also improved). Topic areas include:

Basics of Algebra (Use of Equations; Scientific and Engineering Notations; Ohms Law Series and

Parallel Circuits); Semi-Conductor Theory (FETs); Uses of the DMM (Digital Multi-Meter); and,

Uses of the Oscilloscope. All topic areas are based on teacher lectures with audio HELP databases in

the following languages: Spanish, Russian, Chinese, and English.
Technology for Access and Function 3-47

Small Business Innovative Research (SBIR), Phase I

Colorado

Personal Scanner: A Hand-held Device That Speaks the Information

Displayed on Common Office Equipment

SMS Consulting

8007 Hillsboro Court

Ft. Collins, CO 80525

stephenmsutter@aol.com

Principal Investigator: Stephen M. Sutter

Public Contact: 970/635-0610; Fax: 970/635-0610

Project Number: ED-00-PO-3843

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 00 $50,000

Abstract: This project demonstrates the technical merit, feasibility, and cost efficiency of a portable

electronic device to assist a person with a visual impairment in the use of common office equipment.

The specific application area tested in this project is providing a device that reads the digital display

of common office equipment and speaks what is displayed in English. Recent breakthroughs in

image acquisition, pattern recognition, and speech synthesis provide the basic building blocks for

this technology to be applied to this area. Specific aims in this project are to: (1) develop custom

algorithms that will train the system to recognize text and icons on the digital displays of common

office equipment and then verbally communicate the correct information to the user; (2) build a

prototype unit; and (3) perform a usability analysis with actual users. During the usability testing, the

success of the user is measured and compared with the success when a job coach is used.
3-48 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

Colorado

QwikClick - An Intelligent Scanning Keyboard that Maximizes the

Capability of Single-Switch Users

SMS Consulting

8007 Hillsboro Court

Ft. Collins, CO 80525

stephenmsutter@aol.com

Principal Investigator: Stephen M. Sutter

Public Contact: 970/635-0610; Fax: 970/635-0610

Project Number: ED-00-PO-3784

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Donna McCole

NIDRR Funding: FY 00 $50,000

Abstract: This research provides a faster alternative to existing keyboard technologies, optimizing

computer performance and user enjoyment for people who use single switches. Specific aims are to:

(1) construct a prototype that incorporates statistical analysis and neural net algorithms to provide

important feedback to the therapist and improved prediction capability to the user; and (2) perform a

usability analysis with actual users to test the feasibility of tailoring a scanning keyboard system to

an individual’s capabilities. Research includes a cost and time comparison made between this system

and conventional scanning keyboard systems.
Technology for Access and Function 3-49

Small Business Innovative Research (SBIR), Phase I

Iowa

Gesture Recognition System for Personal Computing Applications

Future of Technology and Health, LC

PO Box 1233

Iowa City, IA 52244-1233

research@futh.com

http://www.futh.com/gesture.html

Principal Investigator: Jeffrey B. Bishop, PhD

Public Contact: 319/644-3787; Fax: 561/619-8059

Project Number: ED-00-PO-3587

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $50,000

Abstract: This project focuses on recognition of multiple head and face gestures by computer input

devices other than the standard keyboard and mouse. Many people use alternative input devices to

access computers due to mobility impairments or other disabilities including cerebral palsy, ALS,

stroke, spinal cord injury, and repetitive stress injury. The availability of powerful personal computers and inexpensive digital video cameras creates the opportunity to develop a new type of practical

computer interface: gesture recognition. This system uses standard low-cost digital video cameras

(under $100) and standard personal computers. Face and head gestures are used to generate mouse or

keyboard actions to control the computer. For example, one application would allow “surfing the

Web” hands-free using head gestures to navigate Web pages, including selecting and activating

desired links. Gestures recognition can be used to replace or augment existing such as head, foot, or

hand-activated switches, something that could greatly improve computer access speed. Gesture

recognition is expected to fill an important gap between switches, speech recognition (which has a

number of disadvantages in work and school settings), and expensive head-tracking systems for

computer control.
3-50 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

Maryland

Testing Vision in Young Deaf Children

Institute for Disabilities Research and Training, Inc. (IDRT)

2424 University Boulevard West

Silver Spring, MD 20902

idrt@aol.com

http://www.idrt.com

Principal Investigator: Carl J. Jensema, PhD

Public Contact: 301/942-4326; Fax: 301/942-4439

Project Number: ED-00-R-0013

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $49,997

Abstract: This project is developing two computerized vision screening systems for children who

are deaf. The first is a simple computer software system that can be marketed for under $50. This

Simple Vision Screening (SVS) system is aimed at parents and others who wish to do simple home

vision screening. The second system is much more sophisticated and is for use by trained school

personnel. The Advanced Vision Screening (AVS) system is based on computerized eye tracking

equipment. Very little attention has been paid to vision in children who are deaf, even though this is

the sense that replaces hearing for most communication and learning tasks. To maximize the potential of children who are deaf, it is necessary not only to make full use of residual hearing, but also to

make sure there are no vision problems. It is extremely important that children who are deaf and who

have vision problems be diagnosed as early as possible, so that the condition can be dealt with and

its impact minimized. Unfortunately, there are no modern, computerized vision screening tests

available to parents and schools that are specifically geared to young children who are deaf.
Technology for Access and Function 3-51

Small Business Innovative Research (SBIR), Phase I

Minnesota

A Computerized Worker-Job Assessment to Access Assistive

Technology Information for the Workplace

Lifease, Inc

2541 - 15th Street Northeast

New Brighton, MN 55112

mclifease@aol.com

Principal Investigator: Barbara A. Larson

Public Contact: 651/636-6869; Fax: 651/636-7075

Project Number: ED-00-PO-3935

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 00 $49,987

Abstract: WORKEASE software helps to identify and solve work-site problems due to limitations

resulting from aging in the workforce, disability, or hazard. The completed program gives decision

makers, whether they are workers, employers, or others, an efficient and effective checklist-type

instrument for creating and implementing state-of-the-art workplace adaptations. The project defines

appropriate ability and demand characteristics and builds a demonstration database of job-adapting

assistive technology. For each identified job requirement that exceeds worker capacity, the program

retrieves a solution from its database that enables assistive technology to adapt the job to the individual.
3-52 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

New Jersey

A Modular Desktop Manipulator

Applied Resources Corporation

Rehabilitation Technologies Division

1275 Bloomfield Avenue

Fairfield, NJ 07004

http://appliedresource.com/RTD

Principal Investigator: Richard Mahoney

Public Contact: 973/575-0650; Fax: 973/575-0709

Project Number: ED-99-PO-4636

Start Date: September 1, 1999

Length: 6 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $49,987; FY 00 (No-cost extension through 3/17/00)

Abstract: This project explores the feasibility of the Modular Desktop Manipulator in terms of

facilitating access to hands-on science education environments for students with physical disabilities.

This includes the construction of a working prototype of the system in conjunction with teachers and

consultants. The Modular Desktop Manipulator permits students with physical disabilities to carry

out effectively a wide range of tasks in a classroom setting in a way that is supportive of the students’ learning and is easily facilitated by the teacher. The modularity and extensibility of the device

permits its use in a wide range of custom desktop activities.
Technology for Access and Function 3-53

Small Business Innovative Research (SBIR), Phase I

New Jersey

Writing Rehabilitation System with Dynamic Analysis Tools

CyBotic Technologies, Inc.

1395 Ridge Road

Phillipsburg, NJ 08865

cybotictech@engineer.com

Principal Investigator: Charles Pfeiffer

Public Contact: 908/475-2901

Project Number: ED-00-PO-3857

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 00 $50,000

Abstract: This project helps people reacquire handwriting skills while reducing the work of occupational therapists by developing a “writing trainer” assistive technology for home and professional

settings. The task of handwriting has always been linked to psychological and educational wellbeing, and recent research professes that the lessons of handwriting have such a beneficial impact

that such learning is paramount to healthy mental development. The loss of handwriting skills due to

a stroke or other debilitation is immeasurably distressing; occupational therapists spend many hours

helping individuals reacquire some if not all of them. The envisioned handwriting trainer would

allow occupational therapists to preprogram or select routines for users to perform on their own. It

would physically help individuals perform handwriting motions and use sensory interfaces to monitor performance.
3-54 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

New York

Conception, Design, and Implementation of an Audio/Tactile

Atlas of the World for Use by Students Who are Blind

or Visually Impaired and Others

Touch Graphics

140 Jackson Street

Brooklyn, NY 11211

sl@touchgraphics.com

http://www.touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 718/383-8265; Fax: 718/389-1541

Project Number: ED-00-PO-3854

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $49,917

Abstract: This project tests the feasibility of an innovative, accessible Atlas of World Maps that

helps readers who are blind or who have visual impairments to explore and learn about world geography. By pressing regions, shapes, objects, and icons on the tactile map, the user activates interactions with a human-voice narrator. The user selects from a number of operational modes to gain

access to a database of sociopolitical and geographical information that corresponds to regions and

places depicted on the maps. The Atlas is as an accessory application for the Talking Tactile Tablet,

an inexpensive computer device created by Touch Graphics, on which a user mounts raised-line and

textured (tactile) plastic map overlays. The National Geographic Society’s Map Division supplies

base maps and associated information, and provides cartographic expertise to ensure that the product

meets current standards for print Atlases.
Technology for Access and Function 3-55

Small Business Innovative Research (SBIR), Phase I

Rhode Island

Development of Noise-based Devices That Enhance

Somatosensory Function

Sensory Technologies, Inc.

194 Waterman Street

Providence, RI 02906-4015

jason_harry@sensorytechinc.com

Principal Investigator: Jason D. Harry, PhD

Public Contact: 401/453-9933; Fax: 401/453-9915

Project Number: ED-00-PO-3779

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 00 $50,000

Abstract: This project expects to demonstrate that the tactile sense and quiet stance stability of

research subjects can be improved by applying electrical noise to certain areas of the foot and ankle.

This result would lead the way to commercialization of a new class of devices (therapeutic electrical

stimulation devices) that would benefit people’s mobility and security and would also result in

significant savings in healthcare for broad classes of patient groups, including elderly people, people

with diabetes, and people who have had a stroke. Stochastic resonance (SR), a counterintuitive

phenomenon in which slight amounts of environmental noise actually increase the discernability of

signals or stimuli, has been demonstrated to affect somatosensory (tactile and proprioceptive) sensitivity in networks of sensory cells in healthy, young subjects and clinical subjects. Somatosensory

dysfunction is known to have significant clinical sequellae including gait abnormalities, propensity

to fall, and foot ulcers; the project designs tests that represent activities of daily living and examines

whether the use of electrical noise results in better function.
3-56 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

Utah

Omnidirectional Wheelchair to Increase the Mobility of Persons with

Physical Disabilities

Lincoln Laboratories

1946 South 1600 West

College Ward, UT 84339

kremund@optionsind.org

Principal Investigator: Kent Remund, 435/760-1488

Public Contact: 435/755-3442; Fax: 435/753-5390

Project Number: ED-00-PO-3781

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 00 $45,100

Abstract: This project develops an omnidirectional wheelchair that is simple, light, inexpensive, and

capable of indoor and outdoor navigation across a variety of terrains and among a variety of user

types. To overcome the obstacles others have had in trying to commercialize this needed capability,

the developers propose a middle-wheel-drive device that is composed of one motor and two sensors,

and has retrofit capability. The project: (1) describes the target market and additional consumer

markets that may be appropriate, including market size and potential revenues from each market

segment; (2) develops consumer-driven product specifications in the design, ease of use, and user

interface; (3) creates technical specifications leading to the development of the prototype device; and

(4) determines the feasibility of the new product design.
Technology for Access and Function 3-57

Small Business Innovative Research (SBIR), Phase I

Virginia

A Low-Cost, High-Performance Physical Activity Monitor (PAM)

Barron Associates, Inc.

1160 Pepsi Place, Suite 300

Charlottesville, VA 22901

http://www.barron-associates.com

Principal Investigator: B. Eugene Parker Jr., PhD

Public Contact: 804/973-1215; Fax: 804/973-4686

Project Number: ED-00-PO-3741

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 00 $49,725

Abstract: This project focuses on health-related physical fitness assessment and physical activity

monitoring. In particular, the Team of Barron Associates, Inc. (BAI), the Human Performance

Laboratory at Barnes-Jewish Hospitals, and the Washington University School of Medicine, propose

to develop a miniature, lightweight, low-profile, low-cost, high-performance multifunctional Physical Activity Monitor (PAM) to collect, store, and analyze translational and rotational motion and

heart-rate data in children and other subjects. The system addresses the deficiencies of current

commercial activity monitors. Monitoring of both motion and heart rate allows assessment of healthrelated physical fitness via computation of the Energy Expenditure Index in ambulatory children

both with and without handicaps. All information collected and stored on the PAM device is

uploadable to a PC for off-line data analysis.
3-58 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

Virginia

Graph And Print (GAP)

Automated Functions, Inc.

7700 Leesburg Pike, Suite 420

Falls Church, VA 22043

autofunc@tmn.com; marylandon@compuserve.com

Principal Investigator: Ronald A. Morford

Public Contact: 703/883-9797; Fax: 703/883-9798

Project Number: ED-00-PO-3782

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 00 $49,922

Abstract: The objective of the Graph And Print (GAP) project is to provide better access to graphs

that may greatly assist students who are blind or who have low vision in comprehending math and

science equations. These students do not have access to graphing scientific calculators, which are

widely used by sighted students. This is important since it hinders students with visual impairments

from obtaining the information provided on their graphic display. Custom software, combined with

sensory modalities of synthetic speech, stereo sound, and a haptic (force feedback) mouse, provide a

system that enables students with visual impairments to analyze and print graphs of equations independently. GAP enables all or part of graphs to be printed and therefore is available to both the

sighted teacher and the student with a visual impairment. GAP enables these students to compete

equally with their sighted peers in math and science courses.
Technology for Access and Function 3-59

Small Business Innovative Research (SBIR), Phase I

Virginia

Interactive Multimedia to Facilitate the School-to-Work Transition of

Secondary Students and Young Adults with Disabilities

American Research Corporation of Virginia

1509 Fourth Street, P.O. Box 3406

Radford, VA 24143-3406

arcova@swva.net

Principal Investigator: Russell J. Churchill, PhD

Public Contact: 540/731-0655; Fax: 540/731-0836

Project Number: ED-00-PO-3586

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $50,000

Abstract: This project develops and evaluates an innovative interactive multimedia program offering training in workplace competencies and foundation skills for secondary students and young

adults with disabilities. The prototype program, based on guidelines of the U.S. Department of

Labor’s Secretary’s Commission on Achieving the Necessary Skills (SCANS), offers school-to-work

transition training for secondary students and young adults with disabilities. Technical objectives

include developing training content and scripts for video portions of the program, integrating the

content with multimedia presentation technology, and evaluating the system with regard to usability

and knowledge-gain potential.
3-60 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR Phase II)

Florida

Automated PC-Based Speech-to-Sign-Language Interpreter

Vcom3D, Inc.

3504 Lake Lynda Drive, Suite 390

Orlando, FL 32817

es_ssi@bellsouth.net

http://www.seamless-solutions.com/html/sign_language

Principal Investigator: Edward M. Sims, PhD, 407/737-7309

Public Contact: Carol Widenman, 407/737-7310; Fax: 407/737-6821

Project Number: ED-99-CO-0116

Start Date: September 1, 1999

Length: 24 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $124,276; FY 00 $124,275

Abstract: This project integrates speech recognition and natural language processing software with

Seamless Solutions, Inc.’s PC-based Signing AvatarsTM 3D character animations of sign language

communication to provide a prototype PC-based speech-to-sign language and text-to-sign-language

interpreter. The new development in this project is the addition of Natural Language Processing

(NLP), using a sign lexicon and translation rules that analyze English sentences to provide not only

correct translations of each sign, but also correct and realistic facial expression, timing, and emphasis. The result is the synthesis of high quality, realistic sign language translation of spoken or textual

English language input.
Technology for Access and Function 3-61

Small Business Innovative Research (SBIR), Phase II

Maryland

A Computer Program to Emulate TTY Communication

Institute for Disabilities Research and Training, Inc.

2424 University Boulevard West

Silver Spring, MD 20902

idrt@aol.com

http://www.idrt.com

Principal Investigator: Carl Jensema

Public Contact: 301/942-4326 (V/TTY); Fax: 301/942-4439

Project Number: ED-99-CO-0117

Start Date: September 1, 1999

Length: 24 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $125,000; FY 00 $125,000

Abstract: This project produces a marketable Baudot TTY program for personal computers, and a

programmer’s tool kit for adding Baudot communication to other programs. Previous research

demonstrated that it is now possible to emulate TTY communication on a personal computer using

software alone. Rather than generating tones using special hardware, the tones for each Baudot

character can be stored in audio waveform files and transmitted as needed. Similarly, incoming tones

can be recorded into a computer and analyzed mathematically to identify the Baudot characters

received. A personal computer with this software can be used to communicate with the Baudot TTY

equipment currently used by the Deaf community.

Independent Living and Community Integration

Independent living recognizes that each person has the right to independence through

maximum control over his or her life, based on an ability and opportunity to make

choices in performing everyday activities. These activities include: managing one’s

personal life; participating in community life; fulfilling social roles, such as marriage,

parenthood, employment, and citizenship; sustaining self-determination; and

minimizing physical or psychological dependence on others. Community integration

incorporates ideas of both place and participation, so that a person is physically

located in a community setting, and participates in community activities. Issues of

consumer direction and control also are integral to concepts of community integration.

NIDRR’s research program encourages independent living and community integration

to achieve more successful outcomes for people with disabilities, and it fosters the

development of innovative methods to achieve these outcomes and to measure

achievement.

Contents

Rehabilitation Research and Training Centers (RRTCs) ...................................................................... 1

Disability and Rehabilitation Research Projects ................................................................................ 11

Field-Initiated Projects (FIPs) ............................................................................................................ 12

Small Business Innovative Research (SBIR), Phase I........................................................................ 32

Small Business Innovative Research (SBIR), Phase II ...................................................................... 36

Independent Living and Community Integration 4-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center

on Personal Assistance Services (PAS)

World Institute on Disability

510 - 16th Street, Suite 100

Oakland, CA 94612-1520

tom@wid.org

http://www.wid.org

Principal Investigator: Deborah Kaplan, JD

Public Contact: Tom Bleeker, PhD, 510/251-4338 (V); 510/208-9493 (TTY); 510/763-4100 (V,

main switchboard); Fax: 510/763-4109

Project Number: H133B70008

Start Date: July 1, 1997

Length: 60 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 97 $500,000; FY 98 $500,000; FY 99 $500,000; FY 00 $500,000

Abstract: This project furthers the understanding that Personal Assistance Service (PAS) systems

design can better promote the economic self-sufficiency, independent living, and full integration of

people of all ages and disabilities into society. The project explores the models, policies, access to,

and outcomes of, personal assistance services, through: (1) gathering perspectives of consumers,

program administrators, policy-makers, and personal assistants using a state of the states survey and

database development; (2) a policy study; (3) a cost-effectiveness study; (4) a study of workplace

PAS; and (5) a study on the conditions to improve the quality and quantity of the Personal Assistant

workforce.
4-2 Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Florida

Rehabilitation Research and Training Center

on Positive Behavioral Support

University of South Florida

Division of Applied Research and Educational Support (DARES)

Department of Child and Family Studies

13301 Bruce B. Downs Boulevard

Tampa, FL 33612

rrtcpbs@fmhi.usf.edu

http://www.rrtcpbs.org

Principal Investigator: Glen Dunlap, PhD

Public Contact: Kirsten Cuenca, 813/974-3115; Fax: 813/974-6115

Project Number: H133B980005

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 98 $600,000; FY 99 $600,000; FY 00 $600,000

Abstract: This project acquires and disseminates new knowledge to advance the field of behavior

support in school, home, and community settings. Through research and training projects, the Center

increases and enhances the effectiveness of behavioral support strategies, expands the applicability

of effective practices to broader and more diverse populations, and addresses the need for effective

training, technical assistance, and widespread dissemination. The three primary research projects: (1)

expand the applicability of effective interventions, (2) increase and enhance the effectiveness of

interventions, and (3) understand and describe the long-term impacts and processes of effective

behavioral support. Embedded within these research projects are systematic studies of nonaversive

interventions, etiology and prevention, maintenance, self-management, and functional assessment.

The three primary training projects focus on: (1) in-service and pre-service training, (2) dissemination, and (3) technical assistance. The Center is conducted as a consortium that includes the University of South Florida, the University of Oregon, State University of New York (SUNY) at Stony

Brook, the University of Kansas, the University of California at Santa Barbara, and the University of

California at Hayward.
Independent Living and Community Integration 4-3

Rehabilitation Research and Training Centers (RRTCs)

Florida

Rehabilitation Research and Training Center

for Children’s Mental Health

University of South Florida

Florida Mental Health Institute

13301 Bruce B. Downs Boulevard MHC2335

Tampa, FL 33612-3807

kutash@fmhi.usf.edu

http://rtckids.fmhi.usf.edu

Principal Investigator: Robert Friedman, PhD

Public Contact: Krista Kutash, PhD, 813/974-4661 (V); 800/955-8771 (TTY); Fax: 813/974-6257

Project Number: H133B990022

Start Date: September 28, 1999

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $750,000; FY 00 $750,000

Abstract: This project conducts research and training that improves the delivery of services to

children and adolescents who have serious emotional disturbances and their families. Operating

under the model that children and families are best served in coordinated, community-based systems

of care, the RRTC conducts research in the areas of managed care, accountability, school-based

mental health services, and documentation of the characteristics of this population. The project

provides training in the areas of leadership and participatory evaluation, as well as on children’s

mental health services research within a graduate program at the University of South Florida. This

project participates in the NIDRR Scholars program, providing motivated undergraduates with

internship experience in disability research.
4-4 Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center

on Full Participation in Independent Living

University of Kansas Center for Research, Inc.

Schiefelbusch Institute for Life Span Studies

1052 Dole

Lawrence, KS 66045

rtcil@ukans.edu

http://www.lsi.ukans.edu/rtcil/rtcil.htm

Principal Investigator: Glen W. White, PhD, 785/864-0590

Public Contact: 785/864-4095 (V/TTY); Fax: 785/864-5063

Project Number: H133B000500

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $499,876

Abstract: Through research, training, and dissemination, this project makes available personenvironment strategies that enable full participation in society by persons with disabilities from

diverse cultures, varying socioeconomic strata, and emerging disability populations. This mission is

implemented through multiple research and training activities that are influenced by independent

living (IL) philosophy and values; for example, participatory action research is emphasized, in which

consumers take an active role throughout the research process. The RRTC develops, tests, and uses

measurement tools to investigate the interactional relationship between personal and environmental

factors and their effects on full participation in IL by the target populations. Based on the Analytical

Research Framework, four core areas of intervention development and testing include: (1) increasing

the knowledge base about the emerging universe of disability, (2) community participation and

wellness, (3) cultural IL accommodations, and (4) personal and systems advocacy. This project

participates in the NIDRR Scholars program, providing motivated undergraduates with internship

experience in disability research.
Independent Living and Community Integration 4-5

Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center in Rehabilitation

of Persons with Long Term Mental Illness

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

mfarkas@bu.edu; erogers@bu.edu

http://www.bu.edu/SARPSYCH

Principal Investigator: Marianne Farkas, 617/353-3549

Public Contact: Fax: 617/353-7700

Project Number: H133B990023

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $749,990; FY 00 $749,990

Other funding: FY 2000 $300,000 (Center for Mental Health Services)

Abstract: The focus of the Center is on the recovery and rehabilitation of people with long-term

mental illness and the individual and environmental factors that promote recovery. The Center is

linked by its programmatic focus on three specific core areas, strengthened by the use of the appropriate research strategies, and assisted by a vigorous program of training, technical assistance, and

dissemination activities designed to maximize the impact of the RRTC at all levels in the field of

psychiatric rehabilitation. The research program is organized into the following three core or programmatic areas of investigation: Recovery Dimensions, Rehabilitation Interventions, and Alternative Interventions. The research projects are designed to have an impact on the field at multiple

levels—at the personnel level as well as the program and system levels. Research projects use a

participatory research process with significant input from consumers and other stakeholders, and

culminate in dissemination, training, or technical assistance activities to maximize the impact of the

research program. The Training, Dissemination, and Technical Assistance (TDTA) projects are

designed to provide exposure, experience, and expertise level of knowledge transfer. The TDTA

program produces new technologies in recovery and rehabilitation, and increases the likelihood that

researchers, service providers, and others use the cumulative knowledge developed by this Center.
4-6 Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Minnesota

Rehabilitation Research and Training Center for Community

Integration of Persons with Mental Retardation

University of Minnesota

RTC/Institute on Community Integration

204 Pattee Hall

150 Pillsbury Drive Southeast

Minneapolis, MN 55455

lakin001@umn.edu

http://ici2.coled.umn.edu/rtc

Principal Investigator: Charlie Lakin, PhD, 612/624-5005

Public Contact: Mary Hayden, PhD, 612/625-6046; Fax: 612/625-6619

Project Number: H133B980047

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000

Other funding: $640,000 (Administration on Developmental Disabilities); $150,000 (Health Care

Financing Administration); $125,000 (additional NIDRR funds); $60,000 (University of Minnesota); $10,000 (Department of Education)

Abstract: The Center conducts research, training, technical assistance, and dissemination of relevance to enhancing inclusion and self-determination of citizens with mental retardation and related

developmental disabilities (MR/DD). The research program has six outcome areas: support to families, state system reform, Medicaid services, policies and practices for full participation, consumer

controlled services, and direct support personnel. The approach to each priority area includes: (1)

research syntheses of the state of knowledge and practice; (2) secondary analyses of high quality,

topically relevant national and state data sets; (3) case studies of best practices; (4) evaluation of

demonstration efforts to improve policy and practice; (5) survey and interview studies of critical

issues; and (6) group process studies with key constituencies. An integrated intramural training

program addresses the development of skilled disability researchers and rehabilitation professionals,

including graduate students, postdoctoral associates, and research interns. Outreach training programs provide training and technical assistance to agencies and individuals providing support to

people with MR/DD, including members of their families. Outreach programs include conferences

and workshops for a wide variety of national, regional, and state audiences, a state of the science

conference, and intensive technical assistance with community organizations, including advocacy

and self-advocacy organizations. The Center disseminates practical information to targeted audiences

(i.e., IMPACT, Policy Research Brief, Frontline Initiative) and maintains high standards for scholarly

productivity (i.e., books, journal articles). The Center provides print and Web site access to a variety

of other information including descriptions of best practices, national statistics on services and

expenditures, resource guides, and distance learning training.
Independent Living and Community Integration 4-7

Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Independent Living

Management (RRTC-ILM)

The Western New York Independent Living Project, Inc.

3108 Main Street

Buffalo, NY 14214-1384

djusiak@acsu.buffalo.edu

Principal Investigator: Douglas J. Usiak

Public Contact: 716/836-0822; Fax: 716/835-3967

Project Number: H133B000002

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $600,000

Abstract: To help Centers for Independent Living (CIL) become more fully integrated with their

communities, this project identifies and applies best practices, finding examples from both inside

and outside the CIL network. The work is conducted embracing, supporting, and emulating the

principles of the independent living philosophy, which encompass consumer control, self-help,

advocacy, peer relationships, peer role models, and empowerment. The seven projects of the RRTCILM are: (1) developing a database of CIL profiles, aggregating the information required to develop

and implement a set of related research, training, and dissemination projects whose best practices

help to build a secure economic foundation for CILs; (2) designing and testing options for generating

funding from alternative sources, through collaborations with others that include building business

development strategies and analyzing the policy-related and programmatic consequences of various

funding options (such as those independent of public financing); (3) identifying best practices and

developing test programs that allow CILs to expand their services to youth with disabilities and their

families, including those from diverse cultural backgrounds, and to interface with existing educational and transitional programs to prepare children and youth for independent living; (4) modifying

and testing management models of other successful community-based organizations so those strategies benefit CILs; (5) investigating CIL and vocational rehabilitation agency policies related to

collaborations, and designing strategies for innovative partnerships that promote employment outcomes for individuals with disabilities; (6) coordinating activities with the Rehabilitation Services

Administration (RSA) and providing them instruments, curricula, methodologies, resource guides,

and research findings; and (7) providing training and information for CIL policy-makers, administrators, and advocates on the RRTC’s research findings and identified strategies.
4-8 Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on the Community

Integration of Individuals with Traumatic Brain Injury

Mount Sinai School of Medicine

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

http://www.mssm.edu/tbinet

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372 (V); 212/241-8978 (TTY); Fax: 212/348-5901

Project Number: H133B980013

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000

Abstract: This program includes seven projects that: (1) evaluate a measure of community integration that assesses an individual’s level of participation and the experience of that participation, in

home and community; (2) evaluate replications of The Program Without Walls, a pioneering, consumer-oriented program for the delivery of vocational rehabilitation services developed in Rochester

New York; (3) respond to the needs of families by providing peer mentoring by an individual or

family member who has successfully coped with the challenges of a TBI; (4) implement and evaluate the Consumer Advocacy Model (CAM) of substance use prevention within an outpatient TBI

day-treatment program; (5) study the emergence and resolution of post-TBI behavioral and emotional challenges to determine those at risk, and factors in the environment that help in overcoming

challenges such as substance abuse, depression, and anxiety disorders; (6) conduct a longitudinal

study of older individuals with TBI and their counterparts without disabilities to explore the factors

associated with successful post-TBI aging; and (7) validate a brain injury screening effort within a

high school in New York City. Both academic performance and behavioral challenges of children

identified as having had a brain injury are documented.
Independent Living and Community Integration 4-9

Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center

to Improve Services for Children with Serious Emotional and

Behavioral Disabilities and Their Families

Portland State University

Regional Research Institute

School of Social Work

P.O. Box 751

Portland, OR 97207-0751

bridgea@rri.pdx.edu

http://www.rtc.pdx.edu

Principal Investigator: Barbara Friesen, PhD

Public Contact: Arthur Bridge, Assistant Director for Operations, 503/725-4256; Fax: 503/725-

4180

Project Number: H133B990025

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $725,000; FY 00 $725,000

Other funding: FY 99 $150,000 (Center for Mental Health Services (CMHS));

FY 00 $155,000 (CMHS)

Abstract: This project conducts an integrated set of research, training, and technical activities to:

(1) develop and evaluate service delivery models for children with an emotional disturbance and

their families, including family-centered and culturally sensitive services; (2) define and evaluate the

formal and informal components of family support and identify successful family support interventions; (3) identify and evaluate early intervention strategies; and (4) identify, develop, and evaluate

communication skills to enable families and service providers to communicate effectively with each

other. Research issues include caregivers and employment, inclusive care, early intervention, education, service delivery, training, and mentoring. This project participates in the NIDRR Scholars

program, providing motivated undergraduates with internship experience in disability research.
4-10 Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Texas

Rehabilitation Research and Training Center in Community

Integration for Individuals with Spinal Cord Injury

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

One Baylor Plaza

Houston, TX 77030

khart@bcm.tmc.edu; drintala@bcm.tmc.edu

Principal Investigator: Karen A. Hart, PhD; Diana H. Rintala, PhD

Public Contact: Karen A. Hart, PhD, 713/797-5946; Fax: 713/797-5982

Project Number: H133B40011

Start Date: January 24, 1994

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 94 $650,000; FY 95 $650,000; FY 96 $650,000; FY 97 $650,000; FY 98

$650,000; FY 99 (No-cost extension); FY 00 (No-cost extension through 1/23/01)

Abstract: This RRTC: (1) conducts a program of research and training that develops and disseminates new knowledge and techniques to improve personal and psychological adjustment after spinal

cord injury (SCI); (2) enhances family life, including involvement of family members in rehabilitation, and options for marriage, sexuality, reproduction, and parenting; (3) enhances participation in

community life; (4) improves and maintains health status; (5) improves systems for long-term care

(health and other support services) in the community; and (6) identifies gender and cultural differences relevant to community integration of people with SCI. This RRTC houses the National Database of Educational Resources on SCI, collected from a nationwide network of rehabilitation facilities and NIDRR-funded projects on SCI.
Independent Living and Community Integration 4-11

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

District of Columbia

Leadership Development - A New Generation of Effective Leadership

Howard University

2900 Van Ness Street Northwest

Holy Cross Hall, Suite 100

Washington, DC 20008

swalker@howard.edu

Principal Investigator: Sylvia Walker, EdD

Public Contact: 202/806-8086; Fax: 202/806-8148

Project Number: H133A990020

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 99 $175,000; FY 00 $175,000

Abstract: This project improves services provided under the Rehabilitation Act as amended, especially services provided to individuals from minority populations. The goal of the project is to

increase the leadership competencies of individuals with disabilities from underserved and

underrepresented communities, thereby maximizing the full inclusion and integration of people with

disabilities from underserved and underrepresented groups into society, employment, independent

living, family support, and economic and social self-sufficiency. All activities are focused on promoting and ensuring full participation of members of groups who have traditionally been

underserved by the vocational rehabilitation system. Community-based rehabilitation, disability, and

educational organizations and entities work as collaborators to the project in nominating people from

underserved and underrepresented groups to participate in the training and to provide assistance to

the participants in the implementation of a follow-up plan of action. Individuals participate in a

leadership development training program that provides a broad range of technical assistance, consultation, and support services to them during implementation of their individual action plans.
4-12 Independent Living and Community Integration

Field-Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Parents with Disabilities and Their Adolescent Children

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

rolkin@compuserve.com

http://www.lookingglass.org

Principal Investigator: Rhoda Olkin, PhD

Public Contact: 800/644-2666; Fax: 925/944-1859

Project Number: H133G990130

Start Date: October 1, 1999

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $150,000; FY 00 $150,000

Abstract: This project: (1) defines the national population of parents with disabilities with adolescent children and their demographic characteristics; (2) compares family responsibilities, i.e., household tasks and personal care tasks of adolescents in families in which a parent does or does not have

a disability; (3) furthers the understanding of key disability-related concerns for the parents and their

adolescent children; (4) furthers the understanding of family responsibilities within the context of

families in which a parent has a disability; (5) furthers the understanding of the influence of a parental disability on family togetherness and rituals; (6) develops a task analysis model that can be used

to evaluate the degree to which adolescents assist their parents with personal care tasks; (7) generates

hypotheses for further research on parents with disabilities and their children; and (8) develops and

documents methods of reaching underrepresented groups of parents with disabilities.
Independent Living and Community Integration 4-13

Field-Initiated Projects (FIPs)

California

The Relationship Between Early Experiences and Development

in Young Children with Severe Visual Impairments:

A Cross-Cultural Perspective

California State University

Division of Special Education

5151 State University Drive

Los Angeles, CA 90032

jdotekw@calstatela.edu

Principal Investigator: Jamie Dote-Kwan

Public Contact: 323/343-4320; Fax: 323/343-4348

Project Number: H133G80119

Start Date: August 1, 1998

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $116,910; FY 99 $117,539; FY 00 $120,969

Abstract: This longitudinal project examines the relationship between early experiences and the

development of infants and toddlers who are blind. Subjects consist of 60 caregiver-child dyads

divided equally into four different ethnic groups (i.e., African-American, Hispanic/Latino, AsianAmerican, and Euro-American). The children, approximately 12 months old at the onset of the study,

are examined for approximately 16 months, with data collection occurring at four-month intervals.

Major objectives include: (1) to describe the home environment and early experiences of young

children with severe visual impairments; (2) to examine the differences in home environment and

early experiences between African-American, Hispanic/Latino, Asian-American, and EuroAmerican

families; (3) to examine the relationship between caregiver-child interaction and home environment

to the development of young children with severe visual impairments; (4) to identify within-group

variables that positively influence the developmental outcomes of young children with severe visual

impairments; and (5) to identify culturally accepted practices and strategies that facilitate the developmental outcomes of young children with severe visual impairments.
4-14 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Colorado

Evaluation of Voucher Alternatives for Early Intervention

Developmental Disability Services

University of Colorado Health Sciences Center

Department of Psychiatry

4200 East Ninth Avenue

Campus Box C268-63

Denver, CO 80262

steven.rosenberg@uchsc.edu

http://jfkproject.org/programs.asp

Principal Investigator: Steven Rosenberg

Public Contact: 303/315-0178; Fax: 303/315-5641

Project Number: H133G80121

Start Date: July 1, 1998

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 98 $119,687; FY 99 $124,411; FY 00 $124,940

Abstract: This study compares the effect of Block (traditional) and Flexible (fee for service) funding

of Part C early intervention services on parent satisfaction, costs, and service utilization. Flexible

funding allows families to obtain services from multiple providers and programs. Block funded

services are provided through a single program that provides all Part C services for the child at a

fixed monthly rate. Preliminary findings indicate that children in Flexible funding receive fewer

educational services and more therapy than children served through Block funding.
Independent Living and Community Integration 4-15

Field-Initiated Projects (FIPs)

Florida

Home-Based Video-Counseling for Rural At-Risk Adolescents with

Epilepsy and Their Parents: An Accessibility and Outcome Analysis

University of Florida

College of Heath Professions

Department of Clinical and Health Psychology

P.O. Box 100165

Gainsville, FL 32610-0165

rgluecka@hp.ufl.edu; pdages@hp.ufl.edu

Principal Investigator: Robert L. Glueckauf, PhD

Public Contact: Patricia Dages, Project Coordinator, 352/265-0680, ext. 4-4129; 800/282-2962

Project Number: H133G990500

Start Date: December 1, 1999

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $149,900; FY 00 $149,900

Abstract: This project is evaluating the impact of issue-specific, video-system counseling on the

psychosocial and educational functioning of at-risk teens with epilepsy and their parents who reside

in rural areas. Objectives include: (1) assessing the difference between home-based video counseling

and office-based counseling on the level of improvement, severity, and frequency of specific problems identified by at-risk teens and their parents; (2) assessing the difference between home-based

video counseling and office-based family counseling on the therapeutic relationship between family

member and counselor, and on overall consumer satisfaction; (3) examining the effects of homebased video counseling and office-based counseling on overall family functioning; and (4) testing for

differences in adherence to intervention and in attrition rates between families in the two counseling

conditions.
4-16 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Florida

Integrated Services and Parent Partnerships in Schools:

Meeting the Needs of Children with Emotional and Behavioral

Disabilities and Their Families

University of South Florida

Florida Mental Health Institute

13301 Bruce B. Downs Boulevard

Tampa, FL 33612-3899

kutash@fmhi.usf.edu

http://rtckids.fmhi.usf.edu/RTC%20Report/RTCstudy8.html

Principal Investigator: Krista Kutash, PhD

Public Contact: Cindy Liberton, 813/974-4622; Fax: 813/947-6257

Project Number: H133G70013

Start Date: August 1, 1997

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 97 $125,000; FY 98 $124,102; FY 99 $124,156; FY 00 (No-cost extension

through 10/31/00)

Abstract: This project empirically tests the effectiveness of an integrated services model designed to

help children with severe emotional and behavioral disabilities (EBD) by including parents as partners with service providers and schools. The project identifies outcomes for children with EBD in

the areas of academic achievement, social functioning, and community adjustments. Under the

conditions of an integrated services model, outcomes of parents as partners versus usual special

education practice are compared.
Independent Living and Community Integration 4-17

Field-Initiated Projects (FIPs)

Illinois

Determining the Effectiveness of a Capacity-Building Program for

Individuals with Chronic Fatigue Syndrome

DePaul University

Department of Psychology

2219 North Kenmore Avenue

Chicago, IL 60614-3504

rtaylor@wppost.depaul.edu

http://www.depaul.edu/~ljason/cfs

Principal Investigator: Renee Taylor, PhD

Public Contact: 773/325-2060; Fax: 773/325-4721

Project Number: H133G000097

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 00 $149,848

Abstract: This project evaluates the efficacy, replicability, and sustainability of peer-based intervention strategies applied to individuals with chronic fatigue syndrome (CFS) as implemented within a

Center for Independent Living (CIL). The project applies theoretical frameworks of empowerment

theory, participatory action research, control theory, and the new paradigm of disability. The predicted outcome is that such community-based intervention improves overall quality of life, functional capacity, illness severity, coping, and service utilization among individuals with CFS. In

addition, the study predicts that the intervention serves to increase knowledge and awareness of CFS

among CIL staff. The resulting findings, curriculum, and resource manual are disseminated to other

individuals with CFS, researchers, treatment providers, policy-makers, self-help groups, and to CILs

nationwide. These findings have important implications in the design of future studies for people

with CFS, and for individuals with other emergent disabilities, such as fibromyalgia, multiple chemical sensitivity, and Gulf War Syndrome.
4-18 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Illinois

The Development of a Valid System for Measuring Rehabilitation

Service Outcomes

Foundation for Rehabilitation Education and Research

1835 Rohlwing Road, Suite E

Rolling Meadows, IL 60008

fongchan@aol.com

Principal Investigator: Fong Chan, PhD, CRC; Stanford E. Rubin, EdD, CRC, 618/536-7704

Public Contact: Fong Chan, PhD, CRC, 847/818-1967; Fax: 847/394-2172

Project Number: H133G990137

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 99 $146,373; FY 00 $147,958

Abstract: This project develops an easy-to-use, reliable, and valid evaluation system called the

Rehabilitation Outcome Measurement and Evaluation System (ROMES). This standardized system

addresses: (1) vocational status, functional capacity, and quality of life; (2) rehabilitation outcomes

that maximize provider/consumer involvement in setting rehabilitation goals; and (3) how to measure rehabilitation gains in the specified competency areas. These competency areas include independent living, social and psychological functioning, and work. The research product is primarily

targeted to meet the program evaluation needs of people with disabilities, rehabilitation service

providers, and managers/administrators in state vocational rehabilitation (VR) as well as those

involved in private rehabilitation.
Independent Living and Community Integration 4-19

Field-Initiated Projects (FIPs)

Kansas

Independent Living for People with Psychiatric Disabilities: Using

Contextual Cues to Remove Environmental Barriers

University of Kansas Medical Center

Occupational Therapy Education

3033 Robinson Building

3901 Rainbow Boulevard

Kansas City, KS 66160-7602

tbrown@kumc.edu

Principal Investigator: Catana Brown, PhD

Public Contact: 913/588-7195; Fax: 913/588-4568

Project Number: H133G000152

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 00 $148,765

Abstract: This project examines an intervention that reduces environmental barriers by teaching

contextual cues. The grocery store, an exemplar of a complex community-based environment, is the

focus, and grocery shopping is the designated skill. The hypotheses tests the effectiveness of the

intervention in improving knowledge, performance, and application of grocery shopping skills, and

the relationship of cognition to skill acquisition. Individuals with psychiatric disabilities from five

community-based sites are randomly assigned to either the grocery shopping intervention or a waitlist control group. Outcome measures address all levels of skill acquisition: knowledge, performance

(including generalizability and maintenance), and application of grocery shopping skills. In addition,

measures of basic cognitive processes and executive functioning determine whether cognition

predicts skill acquisition. Consumer collaborators are included in all aspects of the program. The

findings provide direction for enhancing this and other skills training interventions.
4-20 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Louisiana

Louisiana’s Self-Determination Research Project

Louisiana State University Health Sciences Center

Human Development Center

1100 Florida Avenue, Building 119

New Orleans, LA 70119

jeverson@hdc.lsumc.edu; jguillory@hdc.lsumc.edu

http://www.hdc.lsumc.edu

Principal Investigator: Jane M. Everson, PhD

Public Contact: 504/942-8188; Fax: 504/942-5908

Project Number: H133G990169

Start Date: April 1, 1999

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $149,999; FY 00 $150,000

Abstract: This project investigates short- and long-term effects that self-determination instruction,

participation in a Youth Leadership Forum (YLF), or both have on the self-determination abilities,

IEP involvement, and adult outcomes of adolescents with disabilities. The curricula and the YLF are

based on these premises: (1) self-determination is a critical factor for successful transition into

adulthood, (2) individuals with disabilities do not easily achieve desired adult outcomes because they

generally do not possess self-determination skills, and (3) self-determination instruction improves

these students’ adult outcomes. The target population for this study is adolescents with disabilities

attending high schools throughout Louisiana, beginning in their junior year, until one year after

exiting high school.
Independent Living and Community Integration 4-21

Field-Initiated Projects (FIPs)

Michigan

Identifying Social Integration Needs During Transition to Adulthood

Following Traumatic Brain Injury

University of Michigan

Department of Physical Medicine and Rehabilitation

Box 0718

1500 East Medical Center Drive

Ann Arbor, MI 48109-0718

sethaw@umich.edu

Principal Investigator: Seth Warschausky, PhD

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133G000038

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $148,363

Abstract: This study identifies specific social rehabilitation and integration needs of persons with

traumatic brain injury (TBI). Social functioning is a core domain of quality-of-life, a key predictor of

well-being, and is critical to the development of independence. Earlier work has demonstrated that

persons with TBI are at risk for social isolation and impaired social problem-solving (SPS) skills

including the ability to be assertive in achieving desired social outcomes in school, work, and other

settings. SPS skills have been shown to be powerful predictors of social success and integration in

noninjured individuals. The specific aims of this study are to: (1) examine SPS skills as key predictors of social integration and quality of life in a sample of young adults with TBI; (2) examine the

mediating role of SPS in the relationships between age of onset of TBI and outcome variables; (3)

examine predictors of SPS following TBI; and (4) examine SPS following childhood TBI as predictors of social integration and subjective well-being in adulthood.
4-22 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Michigan

Quality of Life for Persons with a Spinal Cord Injury:

A Qualitative Longitudinal Study

Wayne State University

Rehabilitation Institute of Michigan

261 Mack Boulevard, Room 520

Detroit, MI 48201

chduggan@aol.com

Principal Investigator: Colette Duggan, PhD

Public Contact: 313/745-1070; 313/745-9735; Fax: 313/966-7502

Project Number: H133G990219

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $148,565; FY 00 $148,565

Abstract: This qualitative, longitudinal investigation increases understanding of the experience of

quality of life (QOL) of people with spinal cord injury (SCI). The study focuses on changes in selfrated QOL from before injury (retrospectively) through 30 months post-SCI. Project objectives: (1)

to collect longitudinal data on QOL as experienced by various groups of people with SCI, based on

multiple unstructured interviews starting soon after injury; (2) to analyze this information with

specific attention to subjective QOL differences between groups, changes and consistencies over

time, and the interplay of internal factors such as personality and the will to live, with external

factors such as neurological recovery, equipment, and resources; and (3) to disseminate information

on QOL after SCI to consumers, professionals, and other concerned audiences. Analyses of the data

address a number of specific hypotheses on the process of change in subjective QOL.
Independent Living and Community Integration 4-23

Field-Initiated Projects (FIPs)

Minnesota

National Study on the Impact of SSI Redetermination of 18-Year-Old

Youth with Disabilities on Employment, Independent Living, and

Community Participation Outcomes

University of Minnesota

Institute on Community Integration

102 Pattee Hall

150 Pillsbury Drive, SE Room 102

Minneapolis, MN 55455-0223

johns006@tc.umn.edu

Principal Investigator: David R. Johnson, PhD

Public Contact: 612/624-1062; Fax: 612/624-8279

Project Number: H133G000201

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $149,988

Abstract: This project performs five specific types of studies and analyses on the impact of SSI

redetermination: (1) a post-school outcome survey of SSI recipients and nonrecipients: a study in

five or six states on the employment, independent living, and community participation of young

adults with disabilities, including those who have successfully achieved redetermination at age 18,

compared to those whose participation in the program has ceased; (2) individual and family case

studies: in-depth case studies in 3-4 states to better understand the impact of SSI redetermination

policies and practices on individuals and families; (3) a state policy survey: policies and practices

(including the use of information for assessing “work-related functional limitations”) from designated state agencies within the 50 states and U.S. territories, analyzed for their implications for youth

with disabilities and their families; (4) research integration/synthesis: previous post-school outcome,

policy, and service delivery research studies and reports focusing on SSA policies and practices,

reviewed, synthesized, and reported in a comprehensive monograph; and (5) an expert panel/best

practices review: “promising” or “best” practices related to SSA’s SSI redetermination policies and

practices identified and reviewed.
4-24 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

New Hampshire

Survey of Home Ownership Nationwide

University of New Hampshire

Institute on Disability

7 Leavitt Lane, Suite 101

Durham, NH 03824

david.hagner@unh.edu

http://www.alliance.unh.edu

Principal Investigator: David Hagner, PhD

Public Contact: 603/862-4320; Fax: 603/862-0556

Project Number: H133G000034

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 00 $149,999

Abstract: This project systematically investigates the quality-of-life outcomes of home ownership

for people with severe disabilities, and the personal, service system, financial system, and support

network variables associated with achieving and maintaining successful home ownership. Five

interrelated studies are conducted: (1) a home ownership outcome study, using in-person structured

interviews across six states, conducted by individuals with disabilities, in collaboration with the

Temple University Institute on Disabilities, to examine the effect of home ownership on quality-oflife and quality-of-service provision; (2) a study of facilitating and inhibiting factors in home ownership, based on telephone interviews with disability service system personnel, financial personnel,

and informal support persons assisting the successful and unsuccessful home seekers identified in

the outcome study above, in collaboration with the UNH Center for Survey Research; (3) an investigation of the predictors of mortgage company underwriting decisions to test the effect of differences

in disability, assistance, and income sources on mortgage lending; (4) an intensive case study of

selected home owners to examine the personal meaning of home ownership and the process of

overcoming barriers; and (5) a follow-along study of the variables associated with long-term success

by successful home owners.
Independent Living and Community Integration 4-25

Field-Initiated Projects (FIPs)

New York

Preventing Severe Behavior Problems

State University of New York (SUNY) at Albany

Department of Psychology

1400 Washington Avenue

Albany, NY 12222

vmd17@cas.albany.edu

http://www.albany.edu/psy/fac_vmd.html

Principal Investigator: V. Mark Durand, PhD, Project Director

Public Contact: 518/442-5132; Fax: 518/442-4867

Project Number: H133G980104

Start Date: July 1, 1998

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 98 $123,192; FY 99 $124,849; FY 00 $124,849

Abstract: This project studies aspects of the child and his or her home and family to identify risk

and protective factors in the development of severe behavior problems to identify additional ways to

help to prevent later, more severe problem behaviors. Aggression and self-injurious behavior, among

others, represent some of the most difficult obstacles faced by individuals with disabilities, and

seriously interfere with efforts to provide them with more independent lives. The first goal is to

evaluate the impact of the interventions both on a short- and long-term basis, by comparing three

groups in a stratified-random sample: (1) individuals who receive traditional (non-function-based)

intervention; (2) individuals who receive a package of function-based interventions; and (3) individuals who receive a package of function-based behavioral interventions with ongoing intervention

and consultative support. The study evaluates if intervention support successfully prevents behavior

problems from escalating into more severe problems; follow-up is conducted up to two years following the initial intervention. The second goal is to identify developmental and epidemiological patterns of behavior for all 140 children that are predictive of later problems, over a three-year period,

using sophisticated structural equation modeling.
4-26 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

New York

Effectiveness of a System that Includes Computer-Based Monitoring in

Promoting Care Among Older Persons with Physical Disabilities

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

515 Kimball Tower

Buffalo, NY 14214

wmann@hp.ufl.edu

http://cat.buffalo.edu

Principal Investigator: William C. Mann, OTR, PhD

Public Contact: Susan L. Boldt, 800/628-2281; Fax: 716/829-3217

Project Number: H133G990086

Start Date: August 1, 1999

Length: 36 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 99 $150,000; FY 00 $150,000

Abstract: This study determines the effectiveness of using a computer-based system of services

between live-alone older people with physical disabilities and health care professionals. The system,

which includes Internet-based communication (including audio and video), is used to: (1) monitor

daily self-care needs, (2) identify the need for a home health care visit, (3) suggest self-administered

interventions, and (4) provide information and training to enhance daily functional performance. The

study employs a randomized clinical trial design with 100 older people with physical disabilities

from Western New York, an evaluation of assistive device use among older rehabilitation patients, an

evaluation of assistive device use among older renters, and an environmental skill-building program

for family caregivers of dementia patients. Secondarily, the study determines: (1) the costs associated

with placement of computer technology and Internet capacity in the homes of frail elders and instruction in the self-care monitoring program, (2) the reliability of self-report functional assessment

using computer technology in comparison to in-home observation of self-care performance, and (3)

the acceptability of computer monitoring and utilization of intervention components.
Independent Living and Community Integration 4-27

Field-Initiated Projects (FIPs)

Ohio

A Family Intervention Following Traumatic Brain Injury in Children

Children’s Hospital Medical Center

Pediatric Rehabilitation

3333 Burnet Avenue

Cincinnati, OH 45229-3039

wades0@chmcc.org

Principal Investigator: Shari L. Wade, PhD, 513/636-7480

Public Contact: Fax: 513/636-7360

Project Number: H133G990069

Start Date: April 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $149,008; FY 00 $147,765

Abstract: This project operates an outpatient intervention program that studies the impact on

caregiver functioning of moderate to severe traumatic brain injury (TBI) in children. It seeks to

reduce psychological disability in caregivers, thereby enabling the family to support the child’s

recovery from TBI in an optimal way, through development and testing of an intervention adapted

from established problem-solving and communications skills training protocols that have been used

successfully with families of children with chronic illnesses and behavior disorders. The study is a

randomized, controlled trial comparing the effects of standard medical and psychosocial care to

standard care plus the individualized problem-solving and communication intervention on the following outcomes: (1) injury-related stress and burden, and (2) caregiver psychological distress.

Participants include the families of children, aged 6-14, who have experienced a moderate to severe

TBI between 6 and 18 months prior to study participation. Families are randomly assigned to the

standard care or problem-solving/communication skill groups. Group differences are examined using

a multivariate approach to analysis of covariance, controlling for injury severity, age, gender,

sociodemographic status, and time since injury. The hypothesis is that better problem-solving and

communication skills means less injury-related stress and better caregiver functioning among the

intervention group compared to the standard care group.
4-28 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Ohio

Neuropsychological Functioning and Psychosocial Adjustment in

Adolescents with Spina Bifida and NLD

Children’s Hospital Medical Center

Division of Psychology

3333 Burnet Avenue

Cincinnati, OH 45229-3039

robert.ammerman@chmcc.org

Principal Investigator: Robert T. Ammerman, PhD

Public Contact: 513/636-8209; Fax: 513/636-5987

Project Number: H133G000134

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 00 $147,750

Abstract: This study examines the relationship between type and severity of neuropsychological

impairment, in particular the nonverbal learning disability (NLD) profile, and psychosocial functioning in adolescents with spina bifida. Adolescents with spina bifida exhibit a variety of

neurocognitive deficits that are thought to undermine psychosocial adjustment. Between 40 and 50

percent have neuropsychological impairments indicative of NLD, which is strongly associated with

poor social adjustment and internalizing behavior problems (e.g., depression). In general, adolescents with spina bifida display problems in behavioral, social, and personality adjustment, although

there is considerable variability in this population. Primary goals of the study are to: (1) identify

differential patterns of psychosocial management at different points in adolescent development; (2)

determine the predictive utility of the NLD profile to subsequent psychosocial functioning and

determine if psychosocial problems increase with age in those with NLD; and (3) test whether family

functioning moderates the association between neuropsychological impairment and psychosocial

adjustment. Results from this study elucidate causal relationships between neuropsychological

impairment and psychosocial functioning in adolescents with spina bifida, delineate risk factors that

contribute to early identification and the design of effective interventions, and reveal patterns of

psychosocial functioning across age in adolescents.
Independent Living and Community Integration 4-29

Field-Initiated Projects (FIPs)

Oregon

Building Comprehensive Behavioral Support: Bridging the Gap

University of Oregon

Specialized Training Program

1235 University of Oregon

Eugene, OR 97403-1235

http://stpreos.uoregon.edu/stpweb/gaps/default.htm

Principal Investigator: Robert H. Horner, 541/346-2462

Public Contact: Claudia Vincent, 541/346-2486; Fax: 541/346-5517

Project Number: H133G80116

Start Date: May 1, 1998

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 98 $124,975; FY 99 $124,975; FY 00 $124,975

Abstract: This project develops, validates, and disseminates a model of behavioral support that

transforms research results into practical strategies that families and residential providers can use to

break the destructive cycle of problem behaviors in the lives of individuals with severe intellectual

disabilities. Such problem behaviors remain the single most common reason people with disabilities

are isolated from school, work, and community opportunities. The project focuses on youth and

adults with severe intellectual disabilities who have a history of problem behaviors, with an emphasis on providing residential staff and families with a practical technology that allows them to redesign behavioral support. Central objectives of the project: (1) to define a model for moving to comprehensive, positive behavioral support; (2) to conduct research studies examining the effects of the

model on change in problem behaviors and lifestyle; (3) to develop an operations manual that support personnel can use to create practical plans of behavioral support; (4) to field-test the operations

manual with residences that provide residential support to people with severe intellectual disabilities

and problem behaviors; (5) to disseminate project outcomes/products; (6) to manage the project; and

(7) to evaluate the project.
4-30 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Oregon

Women’s Personal Assistance Services (PAS) Abuse Research Project

Oregon Health Sciences University

Child Development and Rehabilitation Center

P.O. Box 574

Portland, OR 97207-0574

powerl@ohsu.edu

Principal Investigator: Laurie Powers, PhD

Public Contact: Mary Oschwald, Project Coordinator, 503/232-9154; Fax: 503/232-6423

Project Number: H133G70154

Start Date: July 1, 1997

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $125,000; FY 98 $125,000; FY 99 $125,000; FY 00 (No-cost extension

through 6/30/01)

Abstract: This project increases the identification, assessment, and response to abuse by formal and

informal personal assistance service (PAS) providers of women with physical and/or cognitive

disabilities living independently in the community. The aims of the project are to: (1) develop culturally sensitive screening approaches to identify PAS abuse, (2) develop a culturally appropriate PAS

abuse assessment protocol, and (3) develop culturally appropriate response strategies to prevent and

manage PAS abuse. Culturally diverse participants assist in the development of these three aims. The

study includes three phases, beginning with a focus group study of culturally diverse women with

physical and cognitive disabilities. Phase II involves the use of findings from Phase I to develop and

disseminate a survey of 260 culturally diverse females with disabilities drawn from four national

organizations. Phase III involves the development and field testing of the effectiveness of the screening, assessment, and support protocols, the final product being a comprehensive package of PAS

abuse prevention materials. The project plans to disseminate these materials on a national basis.
Independent Living and Community Integration 4-31

Field-Initiated Projects (FIPs)

Tennessee

PALS: Postsecondary Adjustment, Literacy, and Socialization for

Secondary Students with Mild/Moderate Disabilities

Vanderbilt University

Peabody College

Box 328

Nashville, TN 37203

lynn.s.fuchs@vanderbilt.edu

Principal Investigator: Douglas Fuchs; Lynn Fuchs

Public Contact: Dianne Nelson, 615/343-4782; Fax: 615/343-1570

Project Number: H133G70050

Start Date: September 1, 1997

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 97 $124,946; FY 98 $124,946; FY 99 $124,946; FY 00 (No-cost extension

through 8/31/01)

Abstract: This project conducts an upward extension of Peer Assisted Learning Strategies (PALS) to

improve Postsecondary Adjustment, Literacy, and Socialization (PALS) for secondary students with

mild/moderate disabilities (MMD): PALS for PALS. The goals are to improve literacy and

numeracy, enhance socialization, and facilitate successful postsecondary adjustments for students

with MMD who enter technical training and nonsupported work settings after high school. Development of this instructional approach is expected to contribute to high schools’ capacity to provide

comprehensive and effective programs for students with MMD.
4-32 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Texas

The Transition of Pediatric Burn Survivors into Adulthood

University of Texas Medical Branch

301 University Boulevard

Galveston, TX 77555-0133

wmeyer@utmb.edu

Principal Investigator: Walter J. Meyer, III, MD

Public Contact: 409/772-3619; Fax: 409/772-9598

Project Number: H133G990052

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $150,000; FY 00 $150,000

Abstract: This study examines the long-term adjustment of pediatric burn survivors as they undergo

the transition from adolescence and burn induced dependency to the independence and autonomy of

adulthood. It is hypothesized that individuals burned as children have increased difficulty with the

transition from home to independent living. They expect that for these individuals, psychosocial

difficulties with the transition to adulthood increase with larger burn size. The study completes a

baseline assessment of 150 individuals ages 18 to 26, burn size 30 percent or greater, and at least 2

years postburn, who have been treated at the Shriners Burns Hospital as children. This assessment

includes a physical disability determination and intelligence testing as well as interviews focusing on

psychiatric disorder, psychosocial adjustment, living arrangement, and family relationships. The data

is analyzed against age, with special attention to gender, burn size and viability, age of burn, physical

handicaps, intelligence, and initial family environment.
Independent Living and Community Integration 4-33

Field-Initiated Projects (FIPs)

Texas

Self-Esteem and Women with Physical Disabilities

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

3440 Richmond Avenue, Suite B

Houston, TX 77046

mnosek@bcm.tmc.edu; rhughes@bcm.tmc.edu

http://www.bcm.tmc.edu/crowd

Principal Investigator: Margaret A. Nosek, PhD

Public Contact: Nancy Swedlund, PhD, 713/960-0505; Fax: 713/961-3555

Project Number: H133G990039

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Donna Nangle

NIDRR Funding: FY 99 $149,997; FY 00 $149,961

Abstract: The purpose of this study is the development of a greater understanding of self-esteem in

women with physical disabilities. The study examines the effectiveness of a psycho-educational,

peer-facilitated workshop intervention designed to enhance the self-esteem of women with physical

disabilities. The goal is to increase self-esteem while concurrently learning about ways to build

relationship skills. Specific subgoals are to understand the impact of gender and disability role

socialization, increase self-awareness and self-understanding, increase self-nurturance, understand

health relationships and boundaries, learn about communication skills and consumer advocacy, and

integrate and apply skills. Peer leaders facilitate the program. The project also documents and widely

disseminates information about the self-esteem of women with physical disabilities, to women with

disabilities, independent living counselors, and mental health professionals.
4-34 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Virginia

Middle School Phonemic Awareness Study

George Mason University

Krasnow Institute for Advanced Study

MS #2A1

Fairfax, VA 22030-4444

bgiven@gmu.edu

http://mason.gmu.edu/~bgiven

Principal Investigator: Barbara Given, PhD

Public Contact: 703/993-4406; Fax: 703/993-4325

Project Number: H133G000142

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $149,920

Abstract: This study investigates the effects of an intensive, acoustically modified, computer-driven

academic intervention called Fast For Word-2 and Fast For Word-3, through an after-school intervention project for middle school students. A large body of research identifies difficulty with phonological processing as the fundamental deficit for many children with reading and language impairments,

so concentration will be on studying: (1) receptive language, (2) phonemic awareness, (3) word

attack skills, (4) word identification, and (5) reading comprehension. To ensure that gains made from

training with processed speech result from distinguished speech sounds rather than time spent concentrating on a computer screen, matched groups of students work an equal amount of time on

computer-driven academic tasks. Control students are provided homework assistance. Functional

magnetic resonant imaging (fMRI) is conducted at Georgetown University as a collaborative extension. The fMRIs plus a battery of psychometric tools are used to evaluate the effectiveness of phonological awareness training in comparison to academic skill development and homework tutoring. As

a tangential consideration, students’ modality preferences are correlated with their number of computer-task trials to investigate the relationship between modality preference and students’ level of

engagement with the computer-driven exercises. These results could help identify students who will

persistently engage in (and benefit from) the computer activities.
Independent Living and Community Integration 4-35

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research SBIR Phase I

Colorado

NutriNet: An Internet Based Self-Directed Multimedia

Nutritional Planning and Grocery Shopping System

for Individuals with Mental Retardation

AbleLink Technologies, Inc.

1879 Austin Bluffs Parkway, Suite 100

Colorado Springs, CO 80918

steve@assess.net

http://www.ablelinktech.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: ED-00-PO-3951

Start Date: September 1, 2000

Length: 6 months

NIDRR Officer: Sean Sweeney, PhD

NIDRR Funding: FY 00 $49,998

Abstract: NutriNet is an Internet-based multimedia system for self-directed menu planning, grocery

list development, nutritional education, and meal preparation. The system uses live video, audio

prompts, and still pictures or animated graphics to: (1) guide the special needs user through the

process of independently preparing a nutritionally healthy menu; (2) generate a shopping list based

upon that menu; and (3) provide an interactive, non-text-based format for understanding various

nutritional concepts. For most Americans, understanding and planning daily diets can be a confusing

and multifaceted. The cognitive challenges faced by people with mental retardation create even

greater barriers in understanding the complexity of nutritional concepts such as the food groups,

caloric values, saturated fats, cholesterol, daily recommended allowances, etc. This has resulted in a

high level of dependency on others and all too often poor nutritional health and excess weight in this

population. Specific objectives for this project include development of a prototype for the Menu

Planning and Grocery List Modules. These Modules are tested against traditional staff-assisted

methods of menu planning and comprehension of text-based grocery lists by persons with mental

retardation in a pilot study.
4-36 Independent Living and Community Integration

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR Phase II)

Colorado

Visual Assistant: A Portable Multimedia Training System

for Community-Based Skill Development for Individuals

with Mental Retardation

AbleLink Technologies

1879 Austin Bluffs Parkway, Suite 100

Colorado Springs, CO 80918

dan@assess.net

http://www.ablelinktech.com

Principal Investigator: Daniel Davies

Public Contact: Steven Stock, 719/592-0347; Fax: 719/572-0348

Project Number: ED-99-CO-0124

Start Date: September 1, 1999

Length: 24 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $249,997; FY 00 $249,997

Abstract: This project builds on the successful results of previous research to: (1) complete the

Visual Assistant multimedia software program, a Windows CE-based multimedia trainer for training

individuals with mental retardation in specific community integration skills, (2) build a companion

software application for the PC that helps manage the setup of the Visual Assistant training tasks,

and (3) perform expanded field testing of the system to evaluate its applicability for a wide range of

activities of daily living and levels of disability. One of the most exciting aspects of the Visual

Assistant system is its promise for reducing the need for human assistance when performing activities of daily living. Activities that have been too difficult without assistance from a caregiver or

counselor can be programmed into the portable Visual Assistant system to help the individual perform the task independently, maybe for the first time.
Independent Living and Community Integration 4-37

Small Business Innovative Research (SBIR), Phase II

Massachusetts

Strategies for Test Success: A CD-ROM for Students

with Learning Disabilities

Institute for Learning and Development

5 Militia Drive

Lexington, MA 02421

ildljm@aol.com

Principal Investigator: Lynn Meltzer

Public Contact: 781/861-3711; Fax: 781/861-3701

Project Number: ED-99-CO-0125

Start Date: September 1, 1999

Length: 24 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 99 $250,000; FY 00 $250,000

Abstract: This novel instructional program on CD-ROM teaches test-taking strategies to students

with learning and attention difficulties. The Strategies for Test Success (STRATS) program allows

students to learn and practice test-taking strategies within a motivating, multidimensional, structured

format. Test-taking deficiencies represent a major hurdle for students with learning disabilities who

are now confronted with new barriers to academic success resulting from the recent introduction of

standards-based testing in many states. Improvements in test-taking strategies can help students with

learning disabilities to perform at the level of their potential and to attain greater academic success

that, in turn, prevents the high frustration levels that so often lead to school dropout, delinquency,

and unsuccessful employment histories in this population.

Associated Disability Research Areas

Related disability research emphasizes knowledge areas that are cross-cutting and

essential to the support and refinement of disability research generally. The common

theme linking disability statistics, outcome measures, and the emerging fields of

disability studies, rehabilitation science, and disability policy research is that they all

provide essential frameworks and building blocks for the research and address

important issues in a meaningful way.

Contents

Rehabilitation Research and Training Centers (RRTCs) ...................................................................... 1

Disability and Rehabilitation Research Projects .................................................................................. 5

Field-Initiated Projects (FIPs) .............................................................................................................. 6

Associated Disability Research Areas 5-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Arizona

American Indian Rehabilitation Research and Training Center

Arizona University Affiliated Programs

Institute for Human Development

Northern Arizona University

Box 5630

Flagstaff, AZ 86011-5630

priscilla.sanderson@nau.edu

http://www.nau.edu/~ihd/airrtc

Principal Investigator: Richard Carroll, PhD

Public Contact: Priscilla Lansing Sanderson, Project Director, 520/523-4791 (V); 520/523-1695

(TTY); Fax: 520/523-9127

Project Number: H133B980049

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 98 $595,000; FY 99 $605,000; FY 00 $605,000

Abstract: This Center, in a collaboration that includes the Consortia of Administrators for Native

American Rehabilitation (CANAR) and other Rehabilitation Research and Training Centers, develops, implements, and conducts research and training activities around four core areas. Eight research

projects and six training projects focus on: (1) investigating and analyzing existing disability and

employment data, and recommending methodology for planning and evaluating employment services for American Indians and Alaska Natives; (2) recommending successful strategies to improve

employment outcomes, including existing employment and vocational rehabilitation service practices for American Indians and Alaska Natives with disabilities on or off reservations; (3) developing

and evaluating innovative and culturally appropriate vocational rehabilitation services for the employment of American Indians and Alaska Natives; and (4) disseminating results of the data collection and evaluation of model employment services to a range of relevant audiences, using appropriate accessible formats. Consultation with researchers, CANAR, and the training team helps develop

a dissemination method that is accessible and acceptable for each respective target community.

Information and resources are developed and disseminated to providers, tribal and state vocational

rehabilitative agencies, consumers, and Regional Continuing Education Programs. This project

participates in the NIDRR Scholars program, providing motivated undergraduates with internship

experience in disability research.
5-2 Associated Disability Research Areas

Rehabilitation Research and Training Centers (RRTCs)

California

Disability Statistics Rehabilitation Research and Training Center

University of California/San Francisco

3333 California Street, Room 340

San Francisco, CA 94118

distats@itsa.ucsf.edu

http://dsc.ucsf.edu

Principal Investigator: Mitchell P. LaPlante, PhD, 415/502-5210 (V)

Public Contact: Diana Stammerjohn, Program Coordinator; Barbara Wenger, Information

Specialist, 415/502-5210 (V, Stammerjohn); 415/502-5217 (V, Wenger); 415/502-5216

(TTY); Fax: 415/502-5208

Project Number: H133B980045

Start Date: December 1, 1998

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 98 $700,000; FY 99 $750,000; FY 00 $700,000

Abstract: The Center conducts research in the demography and epidemiology of disability including

costs, employment statistics, health and long-term care statistics, and statistical indicators. Statistical

information is disseminated through published statistical reports and abstracts, journals, professional

presentations, and a publications mailing list. Training activities and resources (such as a predoctoral

program) disseminate scientific methods, procedures, and results to both new and established researchers, policy-makers, and other consumers, and assist them in interpreting statistical information.

A National Disability Statistics and Policy Forum is conducted periodically to foster dialogue between people with disabilities and representative organizations, researchers, and policy-makers. This

project participates in the NIDRR Scholars program, providing motivated undergraduates with

internship experience in disability research.
Associated Disability Research Areas 5-3

Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Policies Affecting

Families of Children with Disabilities

University of Kansas

Institute for Life Span Studies, Beach Center

3111 Hayworth Hall

Lawrence, KS 66045

aturnbull@ukans.edu

http://www.beachcenter.org

Principal Investigator: Ann Turnbull, PhD; H. R. Turnbull, PhD

Public Contact: H. R. Turnbull, PhD, 785/864-7608; Fax: 785/864-7605

Project Number: H133B980050

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 98 $650,000; FY 99 $650,000; FY 00 $650,000

Abstract: This project assesses policies and services and their impact on families’ quality of life,

focusing on four priorities: (1) developing an analytical framework for policy and service analysis;

(2) developing measurement tools that apply state-of-the-art legal and policy analysis methodologies

to the assessment of policies, service systems, and family outcomes; (3) identifying impacts of

partnership (including interagency collaboration and coordination) on family outcomes; and (4)

conducting research with families from diverse backgrounds in several communities and states

(Kansas, Louisiana, and North Carolina). This research agenda is composed of five comprehensive

training projects, six dissemination projects, and five technical assistance projects. Training activities

include: (a) pre-service training and the preparation of three textbooks; (b) in-service training that

helps service providers and families form community coalitions using the measurement toolkit; and

(c) sponsorship of an international state-of-the-science conference. Dissemination activities include:

(a) networking with federal agencies; (b) developing and disseminating the measurement toolkit, six

users’ manuals, and a management information software package; and (c) publishing articles in peerreviewed newsletters, research briefs, fact sheets, a Web site, and a newsletter. Technical assistance

focuses on: (a) enhancing federal and state policies; (b) conducting summer institutes with state-local

partners on policy and service analyses; and (c) developing partnerships with federal agency liaisons,

grantees, and key family and professional organizations to mentor them in using the results of project

research to enhance policies and services.
5-4 Associated Disability Research Areas

Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center on Measuring

Rehabilitation Outcomes

Boston University

Sargent College of Health and Rehabilitation Sciences

635 Commonwealth Avenue

Boston, MA 02215

rmonarch@bu.edu

http://www.bu.edu/cre/rehaboutcomes

Principal Investigator: Alan M. Jette, PhD, 617/353-2704

Public Contact: Roseanne Monarch, 617/353-1297; 617/353-3277; Fax: 617/358-1355

Project Number: H133B990005

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $699,736; FY 00 $699,868

Abstract: This Center develops new, more effective outcomes measurement tools and applies these

tools to determine the effectiveness of medical rehabilitation interventions. Research components

include: (1) identifying gaps in existing outcome measures and developing new instruments that

address these gaps as part of a rehabilitation outcomes system; (2) critically evaluating the newly

developed instruments against tools currently in use; (3) implementing the newly developed outcome

instruments across impairment groups and across rehabilitation settings to assess their feasibility,

responsiveness, and validity; (4) investigating the extent to which specific rehabilitation interventions affect outcomes following the onset of a stroke; and (5) applying modern psychometric techniques to develop dynamic outcome instruments that can also be used with individual patients in a

clinical setting. Several components have been designed to enhance the translation of research

findings into rehabilitation practice and to provide stakeholders with the opportunity to provide input

into the Center including surveys of the use of medical rehabilitation outcomes data, consensus

conferences, institutes, fellowships, a Web site, and a consumer guide to choosing postacute care

services.
Associated Disability Research Areas 5-5

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Center on Emergent Disability: A National Study on the Changing

Impact of Major Demographic, Health, Social, and Economic Trends

on the Manifestation of Disability

University of Illinois/Chicago

Department of Disability and Human Development

1640 West Roosevelt Road

Chicago, IL 60608-6904

gfujiura@uic.edu

http://www.uic.edu/depts/idhd/ced

Principal Investigator: Glenn T. Fujiura, PhD

Public Contact: 312/413-1977; Fax: 312/413-4098

Project Number: H133A990017

Start Date: October 1, 1999

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 99 $250,000; FY 00 $250,000

Abstract: The Center on Emergent Disability at the University of Illinois/Chicago is a national

research effort that seeks to characterize the changing impact of major demographic, health, social,

and economic trends on the manifestation of disability in America. Core activities of the Center

include: (1) state level analysis of changes in the etiology of disability through a systematic canvas

and analysis of state public health surveillance systems; (2) evaluation of the implications of change

from the perspective of implications for service delivery at the local level in conjunction with statewide disability planning councils in Florida, Illinois, New Jersey and Texas; (3) study of political

identity and coalition building with these constituencies and their relationships to the development of

policies in state human services infrastructure; (4) a series of secondary analyses of national health

and economic data sets to profile the character of changes in the population of Americans with

disability; and (5) an integrated framework for monitoring and reporting medical and diagnostic

research on “newly emergent” conditions. The goal is to develop a model of evolving risk and its

impact on population change, state-wide agenda formation, planning, policy choice, and implementation against the backdrop of emergent conceptions of disability.
5-6 Associated Disability Research Areas

Field-Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Arkansas

The Empowerment Project: Promoting Equality for People with

Disabilities Through Electoral Participation

University of Arkansas

Fulbright Institute of International Relations

722 West Maple

Fayetteville, AR 72701

kays@uark.edu

http://www.uark.edu/dispol

Principal Investigator: Kay Schriner, PhD, 501/575-6417

Public Contact: 501/575-7402; Fax: 501/575-6432

Project Number: H133G990188

Start Date: August 15, 1999

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 99 $145,458; FY 00 $149,973

Abstract: The Empowerment Project is a three-year program of research and dissemination activities that address and reduce a variety of barriers to voting. People with disabilities constitute the

largest minority group in the United States, but their voice in American democracy is faint. The

outcomes of this project include: new knowledge based on comparative legal analyses of voting

rights legislation for racial minorities, women, and people with disabilities; a study of implementation of the National Voter Registration Act (NVRA) by disability service agencies; strategies for

improving implementation of the NVRA; new knowledge regarding the effects of state-level differences in election practices on the electoral participation of people with disabilities; a study of the

needs and preferences of people with disabilities with respect to registration and voting practices;

strategies for use by state and local election officials to promote accessibility in registration and

voting; and a National Summit on Electoral Participation by People with Disabilities to promote the

use of project results and products.
Associated Disability Research Areas 5-7

Field-Initiated Projects (FIPs)

California

Disability Rights and the Independent Living Movement: The

Formative Years Nationwide

University of California/Berkeley

The Bancroft Library

UC Berkeley, 486

Berkeley, CA 94720-6000

tsalazar@library.berkeley.edu

Principal Investigator: Charles B. Faulhaber, PhD, 510/642-3781

Public Contact: Theresa Salazar, 510/643-8153; Fax: 510/642-7589

Project Number: H133G000083

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 00 $150,000

Abstract: This project creates a national platform for comprehensive research on the origins and

leadership of the independent living and disability rights movement in the United States. An experienced team collects and preserves oral histories and archival records of pivotal leaders and key

organizations across the country, before they are irretrievably lost. The documentation that is generated about the formative years of the movement is to be made widely available for research use, both

on the Internet and in appropriate archival repositories. The project includes three main components:

(1) oral history interviews with 50 to 60 national and regional leaders of the movement, (2) collection and preservation of historical records in archival repositories, and (3) the creation of an Internetbased Disability Rights and Independent Living Movement Digital Archive that includes oral histories, selected documents, and finding aids for collected materials at all repositories.
5-8 Associated Disability Research Areas

Field-Initiated Projects (FIPs)

Florida

Equiprecise Measurement for ICIDH-2 Classification of Activity: An

Innovative Solution for Evaluating the Worldwide Incidence and

Prevalence of Disability

University of Florida

Department of Occupational Therapy

P.O. Box 100164

Gainsville, FL 32610-0164

cvelozo@hp.ufl.edu

Principal Investigator: Craig A. Velozo, PhD, OTR

Public Contact: 352/846-1950; 352/333-3115; Fax: 352/846-1042

Project Number: H133G990167

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $149,644; FY 00 $149,459

Abstract: This project develops an efficient and precise activity measurement system that is accessible and useful to individuals with disabilities, consumer groups, health care service providers, and

policy-makers. In the context of people with musculoskeletal/connective tissue disorders or orthopedic impairments, Rasch analysis and Computerized Adaptive Testing (CAT) techniques are used,

applying equiprecise measurement to the categories of movement, moving around, and daily life

activities as defined in the Activity dimension of the ICIDH-2. CAT achieves efficiency by selectively presenting questions at the individual’s ability level, and equiprecise measurement refers to

the potential to have high precision in measuring a trait or construct across the entire range of that

trait or construct.
Associated Disability Research Areas 5-9

Field-Initiated Projects (FIPs)

Illinois

Re-Defining Wholeness: Formulating A Minority Group Model of

Disability Identity Development

University of Illinois/Chicago

1640 West Roosevelt Road, M/C 626

Chicago, IL 60608-6904

cg16@uic.edu

Principal Investigator: Carol J. Gill, PhD

Public Contact: 312/355-0550; 312/413-0453 (TTY); Fax: 312/413-2918

Project Number: H133G990110

Start Date: May 1, 1999

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $149,915; FY 00 $146,732

Abstract: The project constructs and validates a theoretical model of disability identity development

analogous to models formulated for ethnic, racial, gay/lesbian, and women’s identity development.

The model has significant value in generating testable hypothesis in disability research by contributing a more refined and differentiated understanding of intragroup developmental differences. The

goals of the project are: (1) to illuminate the process by which people with disabilities develop a

positive identity that integrates their disability status, resulting in a sense of wholeness that fortifies

both their resilience to social devaluation and their efforts to live fully in society; (2) to formulate a

comprehensive model of disability identity development that takes into account the experiences of

people with various disabilities from a range of social/cultural backgrounds; (3) to validate the

model by testing predicted relations between disability identity categories and other variables that

are theoretically relevant to identity development; (4) to use the model to investigate how people

with disabilities who also have other minority group status (based on race, ethnicity, gender, or

sexual orientation) develop disability identity, and organize their intersecting identities and multiple

group affiliations; and (5) to disseminate this information to people with disabilities, their families,

professionals, and advocates so it can be used to support positive identity development in children,

adolescents, and adults with disabilities.
5-10 Associated Disability Research Areas

Field Initiated Projects (FIPs)

Illinois

A Multi-Level Analysis of the Relationship Between Domestic Violence

and Disability

University of Illinois/Chicago

Department of Occupational Therapy

1919 West Taylor Street, M/C 811

Chicago, IL 60612-7250

helfrich@uic.edu

Principal Investigator: Christine Helfrich, PhD

Public Contact: 312/996-4626; Fax: 312/413-0256

Project Number: H133G990144

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 99 $149,853; FY 00 $149,949

Abstract: The nature of this study is to understand the intersection between domestic violence and

disability. All subjects are female adult victims of domestic violence, including detailed case studies

of 15 women who are domestic violence victims with a disability, interviewed and observed in

routine activities of daily living over a two-year period. This project is designed to begin building an

understanding of the relationships and consequences of domestic violence and disability through a

multimethod approach. Research objectives are: (1) to document the extent and nature of impairment/disability among women who are identified as victims of domestic violence in a municipal

hospital; (2) to document the disability-related characteristics of women who present to an emergency shelter for domestic violence; and (3) to disseminate project findings in appropriate formats to

policy-makers, service providers, and consumers.
Knowledge Dissemination and Utilization

Dissemination and utilization are the tools through which to ensure that people with

disabilities become fully integrated and participating members of society. NIDRR’s

dissemination and utilization efforts ensure the widespread distribution, in usable

formats, of practical scientific and technological information generated by research,

demonstration, and related activities. NIDRR’s challenge is to reach diverse and

changing populations, to present research results in many different and accessible

formats, and to use technology appropriately.

Contents

Disability and Rehabilitation Research Projects .................................................................................. 1

Field-Initiated Projects (FIPs) ............................................................................................................ 12

Small Business Innovative Research (SBIR), Phase II ...................................................................... 18

Assistive Technology Technical Assistance Projects ......................................................................... 19

Knowledge Dissemination and Utilization 6-1

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

National Resource Center for Parents with Disabilities

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

tlg@lookingglass.org

http://www.lookingglass.org

Principal Investigator: Megan Kirshbaum, PhD; Paul Preston, PhD

Public Contact: Paul Preston, PhD, 510/848-1112 (V); 800/644-2666 (V); 800/804-1616 (TTY);

Fax: 510/848-4445

Project Number: H133A980001

Start Date: April 1, 1998

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 98 $500,000; FY 99 $500,000; FY 00 $500,000

Abstract: The National Resource Center for Parents with Disabilities focuses on the 10.9 percent of

U.S. families with children in which one or both parents have a disability—nearly 9 million parents.

The Center provides: (1) accessible and disability-appropriate information regarding parenting with a

disability to parents, potential parents, disability advocates, and legal, medical, and social service

providers; (2) training to parents with disabilities, potential parents, and service providers; (3) technical assistance that increases informed practice and informed decisions; (4) program consultation that

increases local and regional services that are accessible and disability-appropriate. To accomplish

these goals, project researchers: (1) consolidate and disseminate information and resources, (2)

synthesize and disseminate materials from other agencies and organizations, (3) develop and disseminate new materials tailored to address the specific needs of parents with disabilities and service

providers, (4) expand the national availability of training and technical assistance to parents with

disabilities and service providers, and (5) develop curricula to train future service providers.

Parenting areas designated as highest priority are: custody, pregnancy and birthing, adoption, adaptive parenting equipment, and general parenting information. The project is staffed by nationally

recognized experts regarding parents with disabilities, the majority of whom are parents with disabilities or family members of parents with disabilities.
6-2 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

California

Ideas for the New Millennium

World Institute on Disability

510 - 16th Street, Suite 100

Oakland, CA 94612-1520

kathy@wid.org; marc@wid.org

http://www.wid.org

Principal Investigator: Kathy Martinez

Public Contact: 510/251-4326; Fax: 510/763-4109

Project Number: H133A990006

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Eva M. Gavillán, EdD

NIDRR Funding: FY 99 $400,000; FY 00 $400,000

Abstract: This project creates a productive international exchange of information and expertise on

disability and rehabilitation, connecting disability research and advocacy leadership in ten target

countries with their peers in the United States. At the heart of this exchange is an on-line information

system that captures innovation, links government officials, policy-makers, disability leaders, rehabilitation specialists, researchers and innovators in a lively exchange of ideas, networks, resources,

and contacts. This sustainable network of information and resources on substantive disability issues

is available across professions, cultures, and communities. The issues critical to the information

exchanges are: (1) disability rights and independent living, (2) employment and entrepreneurial

activity, (3) access and technology, (4) mass media images, and (5) influence through governance.

Using a civil rights perspective, the project addresses disability policy, law, advocacy, research, and

related developments in the ten countries. The project systematically promotes international exchange, reports results, and analyzes their significance in consumer-friendly formats and forums,

including a comprehensive database, five annual symposia, as well as a monthly Webzine and online exchange of information in English and Spanish. The project collaborates with five disabilityled organizations with substantial international experience.
Knowledge Dissemination and Utilization 6-3

Disability and Rehabilitation Research Projects

California

Disability and Rehabilitation Research Project to Disseminate

Independent Living Research Information Through the Mass Media to

Persons with Disability

Center for an Accessible Society

Exploding Myths, Inc.

2980 Beech Street

San Diego, CA 92102

cjones@accessibilesociety.org

http://www.accessiblesociety.org

Principal Investigator: Cynthia Jones

Public Contact: 619/232-2727, ext. 111 (V); 619/234-3130 (TTY); Fax: 619/234-3155

Project Number: H133A980045

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 98 $299,991; FY 99 $299,994; FY 00 $299,988

Abstract: This project disseminates research information on Independent Living (IL) through the

popular mass media. Like many groups who rely on well-planned programs of media dissemination

involving media relations firms, this project hires and works proactively with a media relations firm

and selected researchers to obtain coverage of IL issues in the popular mass media. The goal is to

create the recognition that the target population and its issues require ongoing, in-depth coverage.

The project conducts a proactive “media watch” to identify opportunities to insert an IL perspective

into public debates on policy issues in the popular mass media. As part of that watch, the project

establishes a “rapid response” program to provide members of the popular mass media with resources among IL researchers, and to generate a response from the IL community to stories that omit

the IL perspective. The project manages an interactive Web site to provide information and resources

about IL research to members of the popular mass media, researchers, and consumers.
6-4 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

District of Columbia

TECH CONNECTIONS: Improving the Utilization of Existing and

Emerging Rehabilitation Technology in the State Vocational

Rehabilitation Program

United Cerebral Palsy Associations, Inc.

1660 L Street Northwest, Suite 700

Washington, DC 20036-5602

tlangton@ucp.org

http://www.ucp.org

Principal Investigator: Anthony J. Langton, MS

Public Contact: 202/776-0406; Fax: 202/776-0414

Project Number: H133A980052

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 98 $499,970; FY 99 $500,000; FY 00 $499,978

Abstract: TECH CONNECTIONS facilitates the use of rehabilitation technology in state vocational

rehabilitation (VR) programs. This customer-responsive, customer-driven training, technical assistance, and dissemination project features: (1) a multifaceted approach to training that builds capacity

through new curricula and new supporting materials that augment existing materials, for use by

project-trained rehabilitation and university staff; (2) regional “Train-the-Trainer” forums, topicspecific audio conferences, and satellite video training; (3) individualized technical assistance and

information about the assistive technology, on a case-by-case basis, for rehabilitation professionals

and for their customers with disabilities; and (4) broad-based outreach and dissemination to people

who provide assistive technology. Training includes an Internet-based discussion group open to

rehabilitation professionals, people with disabilities, and other interested parties and a mentoring

program pairing experienced technology users with rehabilitation professionals or people with

disabilities seeking assistive technology. Additional methods of outreach include project announcements circulated to rehabilitation, education, and disability Internet discussion lists; presentations at

conferences and workshops; a toll-free phone number; and an Internet-based newsletter. United

Cerebral Palsy Association works in collaboration with the Center for Rehabilitation Technology and

the Southeast Disability and Business Technical Assistance Center.
Knowledge Dissemination and Utilization 6-5

Disability and Rehabilitation Research Projects

Kansas

Improving Research Information Dissemination and Utilization to

Promote Independent Living (The RIIL Project)

University of Kansas

Research and Training Center on Independent Living

Schiefelbusch Institute for Life Span Studies

4089 Dole Building

Lawrence, KS 66045

rtcil@ukans.edu; jbudde@dole.lsi.ukans.edu; glen@ukans.edu

http://www.lsi.ukans.edu/rtcil/rtcil.htm

http://www.GetRIIL.org

Principal Investigator: James Budde, EdD; Glen White, PhD

Public Contact: 785/864-4095; Fax: 785/864-5063

Project Number: H133A980048

Start Date: January 1, 1999

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 98 $299,999; FY 99 $299,999; FY 00 $299,999

Abstract: This project increases the amount of relevant and useful independent living (IL) information to consumers to enable them to reach their IL goals more effectively. Consumer-empowered

teams determine the need and provide input for research and development over the course of each

project. Activities include: (1) completion of needs and barriers survey, how input from consumers

can help identify priorities, and using this knowledge to create a research primer; (2) developing an

information infrastructure for research that includes a searchable and interactive IL database (available at http://www.GetRIIL.org) and uses existing Internet tools such as chat rooms and Internet

discussion lists; (3) providing technical assistance to consumers, family members, policy-makers,

and practitioners; (4) training practitioners and advocates to provide technical assistance; and (5)

assisting researchers in developing research reports for consumers, family members, and practitioners involving consumers in their research. To date, several products are available that include a brief

of the initial survey, guidelines to research for nonresearchers, and a review of literature related to

writing for nonresearchers. This project is partnered with the Independent Living Research and

Utilization Project at The Institute for Rehabilitation Research (TIRR). This project participates in

the NIDRR Scholars program, providing motivated undergraduates with internship experience in

disability research.
6-6 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

Maryland

ABLEDATA Database Program

ORC Macro

8630 Fenton Street, Suite 930

Silver Spring, MD 20910

abledata@macroint.com

http://www.abledata.com

Principal Investigator: Katherine Belknap, 301/608-8998, ext. 100

Public Contact: Katherine Belknap, 800/227-0216 (V); 301/608-8998 (V); 301/608-8912 (TTY);

Fax: 301/608-8958

Project Number: HN96015001

Start Date: October 1, 1996

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 96 $269,522; FY 97 $269,522; FY 98 $269,522; FY 99 $269,522;

FY 00 $269,522

Abstract: This project maintains and expands the ABLEDATA database, develops information and

referral services that are responsive to the special technology product needs of consumers and professionals, and provides the data to major dissemination points to ensure wide distribution and

availability of the information to all who need it. The ABLEDATA database contains information on

more than 26,000 assistive devices, both commercially produced and custom made. Requests for

information are answered via telephone, mail, electronic communications, or in person.
Knowledge Dissemination and Utilization 6-7

Disability and Rehabilitation Research Projects

Maryland

National Rehabilitation Information Center (NARIC)

KRA Corporation

1010 Wayne Avenue, Suite 800

Silver Spring, MD 20910

naricinfo@kra.com

http://www.naric.com

Principal Investigator: Mark X. Odum

Public Contact: Information Specialists, 800/346-2742 (V); 301/562-2400 (V); 301/495-5626

(TTY); Fax: 301/562-2401

Project Number: ED-99-CO-0057

Start Date: February 1, 1999

Length: 34.5 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 99 $736,876; FY 00 $850,000

Abstract: The National Rehabilitation Information Center (NARIC) maintains a research library of

more than 60,000 documents and responds to a wide range of information requests, providing facts

and referral, database searches, and document delivery. Through telephone information referral and

the Internet, NARIC disseminates information gathered from NIDRR-funded projects, other federal

programs, and from journals, periodicals, newsletters, films, and videotapes. NARIC maintains

REHABDATA, a bibliographic database on rehabilitation and disability issues, both in-house and on

the Internet. Users are served by telephone, mail, electronic communications, or in person. NARIC

also prepares and publishes the annual NIDRR Program Directory and its companion Compendium

of Products by NIDRR Grantees and Contractors. Both are available in database format from

NARIC’s Web site.
6-8 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

Massachusetts

Web Accessibility Initiative - Phase II

Massachusetts Institute of Technology

Web Accessibility Initiative

77 Massachusetts Ave, Room E19-750

Cambridge, MA 02139-4307

http://www.w3.org/WAI

Principal Investigator: Tim Berners-Lee, 617/253-5702

Public Contact:

Project Number: H133A000500

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $499,999

Abstract: The project addresses newly emerging accessibility issues in the Web industry, and expands implementation of existing Web accessibility solutions. Activities include: (1) developing

advanced versions of WAI guidelines and techniques to cover advanced Web technologies such as

XML applications; (2) developing a superset of universal design guidelines by integrating deviceaccessibility issues in 25 or more W3C specifications; (3) documenting techniques for accessibility

features of W3C specifications in appendices and example code; (4) expanding techniques for

retrofitting and validating conformance with WAI guidelines; (5) developing resource packages for

accessibility of E-Commerce and distance learning; (6) providing in-house technical assistance to

industry on the design of accessible Web sites and software; (7) providing and monitoring a liaison

to research and development projects that affect future Web accessibility; and (8) providing technical

assistance to research projects to promote adoption of universal design approaches in development of

new Web technologies. Support for the Phase I project enabled WAI to address cross-disability Web

accessibility issues successfully through a broad range of activities. It has provided a forum where

scores of organizations internationally have combined their efforts to improve the accessibility of the

Web. For tens of millions of Americans with visual, hearing, physical, or cognitive disabilities, Web

accessibility provides the key to the information society: to the on-line commercial world, educational opportunity, employment opportunity, workplace communication, government services,

recreation, and more.
Knowledge Dissemination and Utilization 6-9

Disability and Rehabilitation Research Projects

New York

Center for International Rehabilitation Research Information

and Exchange (CIRRIE)

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

515 Kimball Tower

Buffalo, NY 14214

pipitone@acsu.buffalo.edu

http://cirrie.buffalo.edu

Principal Investigator: John Stone, PhD, 716/829-3141, ext. 169

Public Contact: Kathleen Pipitone, 716/829-3141, ext. 149; Fax: 716/829-3217

Project Number: H133A990010

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Eva M. Gavillán, EdD

NIDRR Funding: FY 99 $400,000; FY 00 $400,000

Abstract: The mission of this Center is to improve rehabilitation services by obtaining and disseminating information on international rehabilitation research and practices. CIRRIE has four primary

objectives: (1) develop and maintain an international research database, searchable from an accessible Web site and organized according to the major types of rehabilitation research, as delineated in

the NIDRR Long-Range Plan; (2) assist grantees of the Office of Special Education and Rehabilitation Services (OSERS) to establish an international component within their domestic conferences by

facilitating and subsidizing participation by international experts and involve U.S. experts in international conferences; (3) conduct an international exchange of research and technical assistance experts

based on requests from rehabilitation research centers in the U.S. and other countries; and (4) disseminate information to rehabilitation service providers on the cultural issues relevant to meeting the

needs of recent immigrants. Publications include monographs addressing the relevant cultural issues

for the top ten countries of origin of foreign-born people in the U.S. The monographs are based on a

model of the service provider as a “culture broker,” with the first monograph in the series addressing

the theory of culture brokering and its relevance to rehabilitation practice. A workshop on this topic

is also available.
6-10 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

New York

National Resource Center on Supported Living and Choice for People

with Mental Retardation and Developmental Disabilities

Syracuse University

Center on Human Policy

805 South Crouse Avenue, Room 101

Syracuse, NY 13244-2280

thechp@sued.syr.edu

http://soeweb.syr.edu/thechp

Principal Investigator: Steven J. Taylor, PhD, 315/443-3851

Public Contact: Bonnie Shoultz, Associate Director; Rachael A. Zubal, Information Coordinator,

800/894-0826 (V); 315/443-3851 (V); 315/443-4355 (TTY); Fax: 315/443-4338

Project Number: H133A990001

Start Date: January 1, 1999

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 99 $400,000; FY 00 $400,000

Abstract: This project conducts information dissemination, training, and technical assistance on

community inclusion, with a specific focus on supported living and choice. The Center identifies and

documents innovative policies and practices for home ownership, self-directed support services, selfdetermination, self-advocacy, and community participation. Activities include the preparation of

information materials for direct support staff, a national survey of state funding for supported living,

and increased efforts to address the needs of historically underrepresented groups. The project

maintains an information clearinghouse on supported living and choice and disseminates resource

material targeted to people with developmental disabilities, family members, professionals, direct

services staff, policy-makers, and providers. It offers assistance and support to Self Advocates

Becoming Empowered, state and local providers, developmental disability councils, and protection

and advocacy agencies.
Knowledge Dissemination and Utilization 6-11

Disability and Rehabilitation Research Projects

Texas

National Center for the Dissemination of Disability Research (NCDDR)

Southwest Educational Development Laboratory

211 East Seventh Street, Suite 400

Austin, TX 78701-3281

lharris@sedl.org

http://www.ncddr.org

Principal Investigator: John Westbrook, PhD, 512/476-6861

Public Contact: Lin Harris, Information Assistant, 800/266-1832 (V/TTY); Fax: 512/476-2286

Project Number: H133A990008

Start Date: September 30, 1999

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 99 $750,000; FY 00 $750,000

Abstract: The National Center for the Dissemination of Disability Research (NCDDR) helps close

the gap between the production of disability research and its use by addressing four objectives: (1) to

increase the use of effective dissemination and utilization strategies among NIDRR-funded research

projects by identifying and evaluating effective D&U methodologies that grantees can use; (2) to

assure access to NIDRR-funded research findings among diverse public audiences by developing,

implementing, and evaluating a range of access strategies; (3) to improve the effectiveness and

efficiency of NIDRR grantees’ dissemination efforts by developing, implementing, and evaluating

plans for collaboration among NIDRR-funded research projects; and (4) to strengthen the capacity of

NIDRR-funded research projects to address the needs of their intended audiences by providing

technical assistance in the design and implementation of dissemination and utilization (D&U) methodologies. Research includes collecting data to clarify information needs among people with disabilities and their families, describing barriers that prevent access to research outcomes, and obtaining descriptions of how researchers set research priorities and disseminate results. D&U activities

include a variety of supports for dissemination to people with disabilities, service and communitybased agencies, advocacy organizations, and disability and mainstream media. The project focuses

extensively on innovative approaches to electronic media, but also addresses the needs of consumers,

service agencies, and others who lack electronic access. NCDDR staff provide information, training,

and consultations in response to technical assistance requests from NIDRR grantees via toll-free

telephone, electronic mail, the World Wide Web, and print media. This project participates in the

NIDRR Scholars program, providing motivated undergraduates with internship experience in disability research.
6-12 Knowledge Dissemination and Utilization

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

Colorado

Total Access: An Innovative System to Provide Destination

Accessibility Information for Children and Adults with Disabilities

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

msnow@mtc-inc.com

http://www.mtc-inc.com

Principal Investigator: Mark Snow

Public Contact: 719/444-0252; Fax: 719/444-0269

Project Number: H133G980013

Start Date: June 1, 1998

Length: 36 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 98 $124,917; FY 99 $124,904; FY 00 $124,912

Abstract: This project develops and tests the technical feasibility and merit of a system that provides

access information about tourist attractions. Accessibility information about destinations is a critical

issue for people with disabilities and their parents, teachers, and friends. When information is unavailable or inaccurate, many people with disabilities are restricted from participating in stimulating

activities, especially those involving people without disabilities. Through the use of standardized

documentation and Internet Web sites, the design phase of this effort produces prototypes of destination access information for several locations. The project reviews a wide range of destination information sources to identify the elements described and types of information presented about each

element. The project then develops a survey instrument to be completed by a number of requirements analysis teams, composed of people with disabilities, their associates, and destination site

managers.
Knowledge Dissemination and Utilization 6-13

Field-Initiated Projects (FIPs)

Colorado

Disability Law Knowledge Management System: A One-Stop

Clearinghouse for Disability Information

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

info@mtc-inc.com

Principal Investigator: Robert H. Gattis Jr.; Brenda Williams

Public Contact: Brenda Williams, 719/444-0252; Fax: 719/444-0269

Project Number: H133G000221

Start Date: June 1, 2000

Length: 36 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 00 $149,998

Abstract: The Disability Law Knowledge Management System (KMS) project develops a comprehensive knowledge dissemination and utilization repository of disability civil rights information in a

Web-based helpdesk format. The system builds on research conducted for the Rocky Mountain

Disability and Business Technical Assistance Center (DBTAC) project, in which a prototype knowledge management system was developed and tested with information specialists from NIDRRfunded DBTACs. The prototype included a portion of the material available on the American with

Disabilities Act. The Disability KMS project expands on the earlier work in two important areas. It

vastly increases the quantity of information in the knowledge base, and it makes the work of information specialists more available to the general public. The project includes a comprehensive evaluation of the resulting system.
6-14 Knowledge Dissemination and Utilization

Field-Initiated Projects (FIPs)

Kansas

A Knowledge Dissemination Project to Enhance

the Transfer of Rehabilitation Engineering and Assistive

Technologies to People with Disabilities

Cerebral Palsy Research Foundation of Kansas

5111 East 21st Street

Wichita, KS 67208

leonarda@cprf.org

http://www.atsolutions.org

Principal Investigator: Leonard Anderson

Public Contact: 316/688-1888; Fax: 316/651-5206

Project Number: H133G80077

Start Date: June 1, 1998

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $124,999; FY 99 $124,999; FY 00 $124,999

Abstract: This project uses information dissemination mechanisms to expand the availability of

assistive technologies that enrich the quality of life of people with disabilities. Goals of the project

are: (1) to encourage technology originators and developers to disseminate information, and to

facilitate dissemination actions regarding assistive devices and modifications to consumer technology; (2) to improve the quality and reliability of the design and fabrication of assistive devices; (3) to

disseminate information about available products and technology to people with disabilities, family

members, and professionals; (4) to facilitate better use of local resources for fabricating technology

devices, with a focus on assistive technology devices; (5) to improve the usefulness and effectiveness of the devices; (6) to ensure that legal implications of providing engineering information on

assistive technology devices are addressed in a satisfactory, cost-effective manner; and (7) to ensure

that people with disabilities are involved in the project’s activities and goals. A Web site has been

established to disseminate information.
Knowledge Dissemination and Utilization 6-15

Field-Initiated Projects (FIPs)

Maryland

Development of a Consumer-Responsive Resource on Assistive

Technology Information

ORC Macro

11785 Beltsville Drive, #300

Calverton, MD 20705

lowe@macroint.com

http://www.abledata.com

Principal Investigator: Robert Gold; Lynn Halverson

Public Contact: Stephen Lowe, 301/572-0887; Fax: 301/572-0999

Project Number: H133G80048

Start Date: May 1, 1998

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 98 $124,969; FY 99 $124,919; FY 00 $124,971

Abstract: This project establishes “AT in the Media,” a database of up-to-date resources on comparative assistive technology information. Since this project works in conjunction with the existing

ABLEDATA project, consumers with disabilities can access the new database through the

ABLEDATA Web site and through access to ABLEDATA information specialists. Sources for the

database include articles from consumer-oriented periodicals, trade publications, and professional

journals. Other multimedia resources are also abstracted. The resources are organized in two Web

site areas called the Reading Room and AT Forum. To ensure that they meet consumer information

needs about assistive technology, these areas are developed with consumer input and advice. In

addition, two new Web-based resources are developed to enable consumers and service providers to

obtain information from other consumers or experts.
6-16 Knowledge Dissemination and Utilization

Field-Initiated Projects (FIPs)

North Carolina

Exploring Universal Design: Developing and Disseminating Universal

Design Education Material Online

North Carolina State University

Center for Universal Design

219 Oberlin Road

Box 8613

Raleigh, NC 27695-8613

molly_story@ncsu.edu

http://www.design.ncsu.edu/cud

Principal Investigator: Molly Story

Public Contact: 303/699-8133; Fax: 303/699-4703

Project Number: H133G000025

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $149,967

Abstract: This project develops an interactive Web site of universal design instructional materials,

project ideas, visuals, teaching strategies, and resources for use by design faculty, students, practicing designers, and user/experts. These growing audiences require sophisticated instructional materials, available through an efficient and timely means of communication and dissemination. Objectives

include: (1) allowing flexibility and discussion in how projects, visuals, and instructional materials

are used in design education; (2) building an infusion model of teaching rather than a prescriptive,

singular curriculum approach; and (3) promoting the site internationally to design faculty, practitioners, and others interested in universal design education. Partners in the project are the Center for

Universal Design, the IDEA Center/Center for Virtual Architecture at SUNY/Buffalo, and the Adaptive Environments Center.
Knowledge Dissemination and Utilization 6-17

Field-Initiated Projects (FIPs)

Wisconsin

Seeking, Screening, Evaluating, Describing, and Disseminating

Approaches Used by Two-Year Colleges to Serve Rehabilitation

Services Clients with Severe/Multiple Functional Limitations in Highly

Effective Ways

University of Wisconsin/Madison

Center on Education and Work

964 Educational Sciences Building

1025 West Johnson Street

Madison, WI 53706

jgugerty@education.wisc.edu

http://www.cew.wisc.edu/nidrr

Principal Investigator: John Gugerty

Public Contact: 608/263-2724; Fax: 608/262-3050

Project Number: H133G70073

Start Date: June 15, 1997

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 97 $124,904; FY 98 $124,885; FY 99 $124,973; FY 00 (No-cost extension

through 8/31/00)

Abstract: This project improves the ability of two-year colleges to serve rehabilitation clients and

other students with significant disabilities by providing ready access to current, detailed descriptions

of highly effective approaches other two-year colleges use to serve these populations. Community

colleges and technical colleges offer opportunities for students to learn skills that pay a living wage,

and they are the postsecondary education venue of choice for state and federal rehabilitation-services

professionals when their clients’ Individual Plans for Employment (IPEs) call for skill training. This

project serves rehabilitation professionals, parents, individuals with severe and multiple limitations,

special educators, vocational educators, and regular educators who wish to: (1) address and solve the

continuing unemployment and underemployment problems of individuals with severe/multiple

functional limitations, and (2) strengthen the approaches used by two-year colleges to serve rehabilitation clients and other students with severe/multiple functional limitations. The project obtains

information, synthesizes it, makes it widely and readily available in print, electronic, and other

alternative formats, and provides training and technical assistance to individuals wishing to replicate

or adapt these approaches.
6-18 Knowledge Dissemination and Utilization

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR Phase II)

California

Trails Web Site with Universal Access Information

Beneficial Designs, Inc.

5858 Empire Grade

Santa Cruz, CA 95060

mail@beneficialdesigns.com

http://www.beneficialdesigns.com

Principal Investigator: Peter W. Axelson; Denise A. Chesney

Public Contact: 831/429-8447; Fax: 831/423-8450

Project Number: ED-98-CO-0046

Start Date: October 1, 1998

Length: 24 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $125,000; FY 99 $130,053; FY 00 (No-cost extension through 9/30/01)

Abstract: This project develops the Trails Web site to provide universal access information for trails

throughout the United States, making the site useful to all hikers, regardless of their ability. The

Universal Trails Assessment Process enables trail managers to assess specific trails objectively with

regard to grade, cross slope, width, surface characteristics, and obstacles. The collected trail data is

processed to create Trail Access Information in a format similar to a Nutrition Facts food label. The

Trails Web site contains Trail Access Information on numerous hiking trails and allows users to

search for trails that meet their specific access needs.
Knowledge Dissemination and Utilization 6-19

Assistive Technology Technical Assistance Projects Assistive Technology Technical Assistance Projects

Georgia

assistivetech.net (formerly Global Assistive Technology

Explorer (GATE))

Georgia Institute of Technology

Center for Rehabilitation Technology

490 Tenth Street Northwest

Atlanta, GA 30332-0156

joe.koncelik@arch.gatech.edu

http://www.assistivetech.net

Principal Investigator: Joseph Koncelik, 404/894-1413

Public Contact: Carol Hughes, 404/894-4283; Fax: 404/894-9320

Project Number: H224B990004

Start Date: November 1, 1999

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 99 $352,000; FY 00 $300,000

Abstract: This project maintains assistivetech.net, a comprehensive, up-to-date, easy-to-use Internet

site on disability-related resources. The site increases the availability of, and access to, information

about assistive technology (AT), services, and resources available for people with disabilities. The

assistivetech.net Website serves people with disabilities, their families, service providers, educators,

employers, and members of their communities. The site has been created for maximum access to all

users, regardless of ability, software, or hardware. assistivetech.net features: access to a comprehensive library (a database) of information on AT and rehabilitation equipment available for all environments; an innovative automated intelligent agent to assist users in problem definition and selection

of appropriate AT devices and service resources; a vendor data entry interface to ensure up-to-date

information on AT and devices; a Web-based meeting place where all people concerned with disability and AT can meet and discuss ideas, problems, and solutions; electronic links to appropriate and

accessible public and private resources and information related to all types of disabilities, including

low-level reading skills.

ADA Technical Assistance Programs

The Americans with Disabilities Act (ADA) opens more opportunities for persons

with disabilities. It also places certain responsibilities on employers, transit and

communication systems, state and local governments, and public accommodations.

To assist covered parties to understand and comply with the ADA, NIDRR has

funded a network of grantees to provide information, training, and technical

assistance to businesses and agencies with duties and responsibilities under the ADA.

Contents

Field-Initiated Projects (FIPs) .............................................................................................................. 1

ADA Technical Assistance Projects ..................................................................................................... 2

ADA Technical Assistance Projects 7-1

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

Illinois

Developing the Capacity of Minority Communities to Promote the

Implementation of the Americans with Disabilities Act

University of Illinois/Chicago

Institute on Disability and Human Development

1640 West Roosevelt Road

Chicago, IL 60608-6904

fabricio@uic.edu; brigidah@uic.edu

http://www.uic.edu/depts/idhd/empower

Principal Investigator: Fabricio E. Balcazar, PhD, 312/413-1646

Public Contact: Brigida Hernandez, PhD, 312/996-6824 (V); 312/413-0453 (TTY); Fax: 312/413-

1804

Project Number: H133G80074

Start Date: June 1, 1998

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 98 $125,995; FY 99 $124,995; FY 00 $124,997

Abstract: This project develops, implements, and evaluates the capacity of minority communities to

further the implementation of the Americans with Disabilities Act (ADA). The project includes: (1)

assisting grass-roots organizations that service the needs of Latinos and African Americans with

disabilities in conducting participatory needs assessments; (2) assisting these organizations in setting

goals and planning actions to address specific problems identified in the needs assessment process;

(3) providing feedback and technical support to these organizations in meeting their goals; (4)

providing leadership training and technical support to strengthen the independence and self-reliance

of these grass-roots organizations; and (5) conducting research with local independent living centers

in minority communities of Chicago, including assessments of ADA physical accessibility and

surveys on barriers to employment.
7-2 ADA Technical Assistance Projects

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region I - CT, ME, MA, NH, RI, and VT

New England Disability and Business Technical Assistance Center -

Region I

Adaptive Environments Center, Inc.

374 Congress Street, Suite 301

Boston, MA 02210

vfletcher@adaptenv.org

http://www.adaptenv.org

Principal Investigator: Valerie Fletcher, Project Director, 617/695-1225, ext. 26

Public Contact: 800/949-4232 (V/TTY in CT, ME, MA, NH, RI, and VT); 617/695-1225, ext. 31

(V/TTY); Fax: 617/482-8099

Project Number: H133D60015

Start Date: October 1, 1996

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 96 $499,830; FY 97 $538,400; FY 98 $520,000; FY 99 $499,830;

FY 00 $532,590

Abstract: The New England DBTAC provides technical assistance, training, and information

dissemination for Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont.

The project’s emphasis is on ensuring that the knowledge and skills to implement the ADA are

infused within state and local organizations. Contracts with each state and with local independent

living centers extend technical assistance capacity throughout the region. The DBTAC uses a tollfree telephone hotline, a World Wide Web site, electronic mailing lists, and audio teleconferencing to

extend its reach throughout New England. The project places a strong emphasis on the training of

trainers, and has established a Training and Technical Assistance Resource Center that supports

trainers and technical assistance providers. A regional advisory board consists of representatives

from each state, including centers for independent living, parent programs, seniors, businesses, and

state and local governments, and provides guidance, helps prioritize the use of incentive grants, and

evaluates DBTAC efforts.
ADA Technical Assistance Projects 7-3

ADA Technical Assistance Projects

Region II - NJ, NY, PR, and VI

Northeast Disability and Business Technical Assistance Center -

Region II

United Cerebral Palsy Associations of New Jersey

354 South Broad Street

Trenton, NJ 08608

dbtac@ucpanj.org

http://www.disabilityact.com

Principal Investigator: Huntley Forrester, 609/392-4004

Public Contact: 800/949-4232 (V/TTY, in NJ, NY, PR, and VI); 609/392-4004 (V); 609/392-7044

(TTY); Fax: 609/392-3505

Project Number: H133D60013

Start Date: October 1, 1996

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 96 $550,000; FY 97 $469,855; FY 98 $578,000; FY 99 $588,000;

FY 00 $598,000

Abstract: The Northeast DBTAC provides technical assistance, training, and information dissemination for New Jersey, New York, Puerto Rico, and the Virgin Islands. In this collaborative effort,

United Cerebral Palsy Associations of New Jersey functions as the lead agency, providing technical

assistance, training, and information dissemination, and coordinating the activities of the regional

program. The New York State Office of Advocate for Persons with Disabilities serves New York and

Cornell University School of Industrial and Labor Relations provides training and management

support for the DBTAC in Region II. The University of Puerto Rico is the program partner in Puerto

Rico.
7-4 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region III - DC, DE, MD, PA, VA, and WV

Mid-Atlantic Disability and Business Technical Assistance Center -

Region III

TransCen, Inc.

451 Hungerford Drive, Suite 607

Rockville, MD 20850

adainfo@transcen.org

http://www.adainfo.org

Principal Investigator: Marian S. Vessels, Project Director

Public Contact: 800/949-4232 (V/TTY, in DC, DE, MD, PA, VA, and WV); 301/217-0124 (V/

TTY); Fax: 301/217-0754

Project Number: H133D60006

Start Date: October 1, 1996

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 96 $575,000; FY 97 $578,000; FY 98 $578,000; FY 99 $600,000;

FY 00 $600,000

Abstract: The Mid-Atlantic DBTAC provides technical assistance, training, and information dissemination for Delaware, the District of Columbia, Maryland, Pennsylvania, Virginia, and West

Virginia. It focuses on two major initiatives to implement the ADA effectively: (1) increasing the

capacity of state and local organizations to implement the ADA by developing six ADA coalitions

made up of employers, people with disabilities, nonprofit organizations, state and local governments,

independent living centers, and other covered entities to provide technical assistance, coordinate

training, disseminate information, and promote awareness of the ADA on the local level; and (2)

providing a wide range of technical assistance services, training, information, and information

dissemination to individuals and entities with responsibilities and rights under the ADA.
ADA Technical Assistance Projects 7-5

ADA Technical Assistance Projects

Region IV - AL, FL, GA, KY, MS, NC, SC, and TN

Southeast Disability and Business Technical Assistance Center -

Region IV

United Cerebral Palsy Associations, Inc.

490 Tenth Street, First Floor

Atlanta, GA 30318

se-dbtac@mindspring.com

http://www.sedbtac.org

Principal Investigator: Shelley Kaplan, 404/385-0636

Public Contact: 800/949-4232 (V/TTY, in AL, FL, GA, KY, MS, NC, SC, and TN); 404/385-0636

(V/TTY); Fax: 404/385-0641

Project Number: H133D60018

Start Date: November 1, 1996

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 96 $650,000; FY 97 $709,031; FY 98 $739,000; FY 99 $722,168;

FY 00 $732,757

Abstract: The Southeast DBTAC provides technical assistance, training, and information dissemination for Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, and

Tennessee. The DBTAC: (1) facilitates timely access to information and technical assistance by

establishing a regional and state presence on the Internet, Internet mailing lists, distance education,

and a Web page; (2) enhances the capacity of DBTAC state affiliates by continuing to assist in

maintaining and updating their libraries of ADA-related resource materials, and by establishing an

instate mentoring program for co-training and assistance in developing ADA awareness within

locales; (3) facilitates state linkages among groups protected by the ADA and entities with responsibilities under the ADA, resulting in effective ADA implementation over the long term; and (4)

expands outreach to people with and without disabilities who are from minority backgrounds. An

information initiative in all eight states is targeted to minority-owned businesses as well as to community organizations, networks, and media serving various ethnic populations.
7-6 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region V - IL, IN, MI, MN, OH, and WI

Great Lakes Disability and Business Technical Assistance Center -

Region V

University of Illinois/Chicago

Department of Disability and Human Development

1640 West Roosevelt Road

Chicago, IL 60608-6904

gldbtac@uic.edu

http://www.adagreatlakes.org

Principal Investigator: David L. Braddock, PhD, 312/413-1647

Public Contact: Robin Jones, Project Director, 800/949-4232 (V/TTY, in IL, IN, MI, MN, OH, and

WI); 312/413-1407 (V/TTY); Fax: 312/413-1856

Project Number: H133D60011

Start Date: October 1, 1996

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 96 $700,000; FY 97 $738,018; FY 98 $778,000; FY 99 $730,000;

FY 00 $750,000

Abstract: The Great Lakes DBTAC provides technical assistance, training, and information dissemination for Illinois, Indiana, Michigan, Minnesota, Ohio, and Wisconsin. ADA Committees in

each state represent business, government, the disability rights community, and other interested

parties. Members of these committees serve as a referral network that can be called upon to address

local issues. The state ADA Committees conduct training conferences, provide technical support,

and address ADA needs that are unique to each state. GLDBTAC disseminates updated information

regarding implementation of the ADA to interested parties throughout the region via its quarterly

newsletter, Region V News, an Internet discussion list, and a learning program.
ADA Technical Assistance Projects 7-7

ADA Technical Assistance Projects

Region VI - AR, LA, NM, OK, and TX

Southwest Disability and Business Technical Assistance Center -

Region VI

The Institute for Rehabilitation and Research (TIRR)

Independent Living Research Utilization (ILRU)

2323 South Shepherd Boulevard, Suite 1000

Houston, TX 77019

lfrieden@ilru.org

http://www.ilru.org/dbtac

Principal Investigator: Lex Frieden

Public Contact: Wendy Wilkinson, Project Director, 800/949-4232 (V/TTY, in AR, LA, NM, OK,

and TX); 713/520-0232 (V); 713/520-5136 (TTY); Fax: 713/520-5785

Project Number: H133D60012

Start Date: October 1, 1996

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 96 $550,000; FY 97 $550,000; FY 98 $600,000; FY 99 $583,683;

FY 00 $608,000

Abstract: The Southwest DBTAC provides technical assistance, training, and information dissemination for Arkansas, Louisiana, New Mexico, Oklahoma, and Texas. The DBTAC is based at Independent Living Research Utilization (ILRU), a program of The Institute for Rehabilitation and

Research (TIRR) in Houston Texas. The DBTAC carries out its activities with the assistance of a

number of affiliated organizations in all the states it serves. Ongoing activities of the DBTAC include ADA outreach to Hispanic individuals. DBTAC affiliates include Centers for Independent

Living in each state, the Consumer Education Foundation of the Better Business Bureau in Austin

Texas, the Center for Health Policy and Law at the University of Houston, and the Regional Rehabilitation Continuing Education Program (RRCEP).
7-8 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region VII - IA, KS, MO, and NE

Great Plains Disability and Business Technical Assistance Center -

Region VII

University of Missouri/Columbia

100 Corporate Lake Drive

Columbia, MO 65203

hamburgl@missouri.edu

http://www.adaproject.org

Principal Investigator: Jim de Jong, Project Director, 573/882-3600 (V)

Public Contact: 800/949-4232 (V/TTY, in IA, KS, MO, and NE); 573/882-3600 (V/TTY); Fax:

573/884-4925

Project Number: H133D60004

Start Date: October 1, 1996

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 96 $500,000; FY 97 $535,000; FY 98 $535,000; FY 99 $500,000;

FY 00 $572,000

Abstract: The Great Plains DBTAC provides technical assistance, training, and information dissemination for Iowa, Kansas, Missouri, and Nebraska. GPDBTAC has established working relationships with state and local agencies throughout the four-state region that assist with service delivery.

Services are tailored to the needs of the consumer. Timely, periodic mailings, by Internet and regular

mail, are sent to professionals, businesses, agencies, local government personnel, persons with

disabilities, and other interested parties announcing new developments and resources related to the

ADA.
ADA Technical Assistance Projects 7-9

ADA Technical Assistance Projects

Region VIII - CO, MT, ND, SD, UT, and WY

Rocky Mountain Disability and Business Technical Assistance Center -

Region VIII

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

endrphn@mtc-inc.com

http://www.ada-infonet.org

Principal Investigator: Joyce Maynard Hume, Project Director

Public Contact: 800/949-4232 (V/TTY, in CO, MT, ND, SD, UT, and WY); 719/444-0268 (V/

TTY); Fax: 719/444-0269

Project Number: H133D60010

Start Date: October 1, 1996

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 96 $512,997; FY 97 $616,754; FY 98 $646,754; FY 99 $693,520;

FY 00 $642,709

Abstract: The Rocky Mountain DBTAC provides technical assistance, training, and information

dissemination for Colorado, Montana, North Dakota, South Dakota, Utah, and Wyoming. The

project includes a centralized InfoCenter that serves as a clearinghouse, a network of experts qualified to provide assistance, and linkages with groups who have rights and responsibilities under the

ADA. Information is disseminated through databases, direct mail, a newsletter, the general media,

and the telephone.
7-10 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region IX - AZ, CA, HI, NV, and the Pacific Basin

Pacific Disability and Business Technical Assistance Center -

Region IX

Public Health Institute

2168 Shattuck Avenue, Suite 301

Berkeley, CA 94704-1307

adatech@pdbtac.com

http://www.pacdbtac.org

Principal Investigator: Erica C. Jones, Project Director, 510/848-2980 (V); 510/848-1840 (TTY)

Public Contact: Robin Kelley, 800/949-4232 (V/TTY, in AZ, CA, HI, NV, and the Pacific Basin);

510/848-2980; Fax: 510/848-1981

Project Number: H133D60016

Start Date: October 1, 1996

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 96 $650,000; FY 97 $753,682; FY 98 $737,789; FY 99 $740,000;

FY 00 $740,000

Abstract: The Pacific DBTAC provides technical assistance, training, and information dissemination for Arizona, California, Hawaii, Nevada, and the Pacific Basin. The DBTAC coordinates and

conducts regional conferences, individual state and local training sessions, and workshops about the

provisions of the ADA. The Center also works to increase the level of local entities’ capacities to

provide expertise to ensure that implementation of the ADA occurs. The Pacific DBTAC engages in

minority outreach and training, and uses electronic distance learning techniques to reach underserved

geographic locations. The current network of affiliates is being expanded to enhance local capacity

through a home page on the World Wide Web and by creating partnerships with business, state and

local government agencies, and people with disabilities. By increasing awareness in the region

through a comprehensive marketing and communications plan, the project is fulfilling the NIDRR

DBTAC priorities.
ADA Technical Assistance Projects 7-11

ADA Technical Assistance Projects

Region X - AK, ID, OR, and WA

Northwest Disability and Business Technical Assistance Center -

Region X

Washington State Governor’s Committee on Disability Issues and Employment

P.O. Box 9046, MS 6000

Olympia, WA 98507-9046

dcolley@esd.wa.gov

http://www.wata.org/NWD

Principal Investigator: Toby Olson, Project Director

Public Contact: Denise Colley, 800/949-4232 (V/TTY, in AK, ID, OR, and WA); 360/438-4116 (V/

TTY); Fax: 360/438-3208

Project Number: H133D60009

Start Date: October 1, 1996

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 96 $512,500; FY 97 $484,322; FY 98 $533,345; FY 99 $533,345;

FY 00 $533,000

Abstract: The Northwest DBTAC provides technical assistance, training, and information dissemination for Alaska, Idaho, Oregon, and Washington. A subcontract has been established with a consumer-controlled, community-based organization in each of the states in Region X. In order to

augment community capacities, the project uses and improves existing community organizational

structures. The project maintains a toll-free number for information, technical assistance, and referral

to national, regional, state, and local resources. The Center provides callers with an appropriate range

of options and links them with individuals in their community who have gained expertise in the

caller’s area of concern.
7-12 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Virginia

National ADA Program Assistance Coordinator

CESSI

6858 Old Dominion Drive, Suite 250

McLean, VA 22101

adata@adata.org

http://www.adata.org

Principal Investigator: Shelia Newman

Public Contact: Lyn Sowdon, Project Director, 703/448-6155 (V); 703/448-3079 (TTY); Fax: 703/

442-9015

Project Number: ED-99-CO-0002

Start Date: November 6, 1998

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $319,744; FY 00 $327,553

Abstract: The role of the ADA Program Assistance Coordinator (PAC) is to enhance the performance of the organizations that are members of NIDRR’s nationwide ADA Technical Assistance

grant program. These include ten regional Disability and Business Technical Assistance Centers

(DBTACs), and Cornell University School of Industrial and Labor Relations’ Research and Demonstration Project (R&D) for improving employment practices covered by Title I of the ADA. The

Program Assistance Coordinator conducts: (1) coordination services, (2) collaborative assistance, (3)

public relations, and (4) reporting activities. In addition, the PAC organizes and manages the semiannual Project Directors’ meetings. It facilitates legal review of grantee generated materials. The

PAC identifies and distributes appropriate materials from federal agencies, related NIDRR research

projects, and private and public sector organizations. As a gateway to the national ADA technical

assistance grant program, the PAC maintains a national Web site, develops and disseminates promotional materials, and implements a national visibility campaign for the grantees.
Capacity-Building for Rehabilitation Research and Training

NIDRR funding for capacity building supports advanced instruction for researchers

and service providers, and training for consumers in applications of new research and

technology. This involves training researchers across disciplines, training

rehabilitation practitioners and service providers to use research-generated knowledge

and new techniques, and training consumers to participate in research efforts.

Distinguished and Merit Fellowships are provided for a one-year period of intense

research. The NIDRR Scholars is an innovative program aimed at generating interest

in research careers for persons with disabilities. Scholars gain research experience

and sponsoring centers receive a small stipend.

Contents

Rehabilitation Research and Training Centers (RRTCs) ...................................................................... 1

Disability and Rehabilitation Research Projects .................................................................................. 2

Fellowships (Distinguished) ................................................................................................................. 3

Fellowships (Merit) .............................................................................................................................. 7

Advanced Rehabilitation Research Training Projects ........................................................................ 13

NIDRR Contracts ............................................................................................................................... 27

NIDRR Scholars 2000-2001............................................................................................................... 28

Capacity Building for Rehabilitation Research Training 8-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers RRTCs

Illinois

UIC National Research and Training Center on Psychiatric Disability

University of Illinois at Chicago

Department of Psychiatry

104 South Michigan Avenue, Suite 900

Chicago, IL 60603-5902

http://www.psych.uic.edu/uicnrtc

Principal Investigator: Judith A. Cook, PhD, 312/422-8180 ext. 19

Public Contact: Jessica A. Jonikas, 312/422-8180, ext. 18 (V); 312/422-0706 (TTY); Fax: 312/422-

0740

Project Number: H133B000700

Start Date: September 30, 2000

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 00 $750,000

Abstract: This Center conducts a comprehensive series of research and training projects that focus

on increasing self-determination for persons with psychiatric disability. The Center’s current projects

are composed of five core areas: (1) choices in treatment decision-making; (2) economic self-sufficiency; (3) consumer advocacy under managed care; (4) career development through real jobs for

real wages; and (5) strengthening self-determination skills and self-advocacy. These core areas

reaffirm that people with psychiatric disabilities have the right to maximal independence, which

grows out of making choices in the decisions that affect their lives. Project activities are implemented by multidisciplinary workgroups composed of consumers, families, service providers, state

agency administrators, researchers, and Center staff. Outcome and measurement tools developed for

each core area assess key outcomes and program policies related to self-determination. The project

includes a collaboratively planned state-of-the-science conference on self-determination and psychiatric disability and a comprehensive report on self-determination in this area. Advanced technology

is incorporated into each project’s objectives and Center training and dissemination activities. Multimedia formats ensure widespread accessibility of the Center’s products and materials to multiple

constituents. Additionally, the Center conducts evaluation and basic research; trains consumers,

families, and rehabilitation, education, and mental health service providers. The staff also develops

and provides information for public policy initiatives.
8-2 Capacity Building for Rehabilitation Research Training

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Center for Minority Training and Capacity Building

for Disabilities Research

Texas Southern University

College of Continuing Education

3100 Cleburne Avenue

Houston, TX 77004

dksimmons@pdq.net

Principal Investigator: Irvine E. Epps, EdD, 713/313-7224

Public Contact: Darrell K. Simmons, Project Coordinator, 713/313-7753; Fax: 713/313-7579

Project Number: H133A990024

Start Date: October 1, 1999

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 99 $300,000; FY 00 $300,000

Abstract: This project addresses the education, training, and preparation of researchers from minority backgrounds and institutions in disability research, in collaboration with other minority, majority,

and tribal institutions. The project includes a multifaceted approach to the assessment of current

barriers experienced by minority researchers, including those with disabilities and those funded by

NIDRR. Project activities include institutional capacity building for minority institutions to conduct

disability research; training minority and majority researchers; and dissemination of information,

communications, and publications to enhance the capacity of researchers to compete for future

research funds.
Capacity Building for Rehabilitation Research Training 8-3

Fellowships (Distinguished) Fellowships Distinguished

California

A Life Course Approach to Peerage and Leadership in the Disability

Rights Movement

Devva Kasnitz, PhD

World Institute on Disability

510 - 16th Street, Suite 100

Oakland, CA 94612-1520

devva@wid.org

http://www.wid.org

Principal Investigator: Devva Kasnitz, PhD, 510/251-4348

Public Contact: Fax: 510/763-4109

Project Number: H133F000044

Start Date: September 1, 2000

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 00 $55,000

Abstract: This project studies how peer contact, role models, mentors, peer support, and crossdisability knowledge contribute to the development of leadership in the disability rights movement.

It focuses on experience and opportunity, rather than on the traits of successful leaders (a popular

focus of previous researchers). The primary source for this research is an archive of 30 life history

interviews collected by the World Institute on Disability (WID) in 1994-96 and oral life histories

collected more recently by the Bancroft Library at the University of California/Berkeley. Sample

selection involved an expert nomination process. Criteria include membership in an historical cohort,

types of leadership, and a focused recruitment for disability and cultural diversity. “Ethnograph”

software and the creation of graphic “life history charts” are used for data analysis. WID believes

that individual leaders move on a continuum from a sense of personal empowerment, gained through

self-advocacy, to group leadership roles. Borrowing from “event history analysis,” this research uses

a Life Course approach that identifies and chronologically maps essential “events” in different

domains of life, creating an “event history.” The model describes how changes in someone’s life are

step-like. It examines the sequencing of events in the domains of family formation, education and

career, disability experience, etc., with disability peer contact and the assumption of leadership

related to “transformations of status” and “roles” in one’s life. Implications of this research include

how to support the development of young leaders.
8-4 Capacity Building for Rehabilitation Research Training

Fellowships (Distinguished)

California

Health and Disability: Pursuing Conceptual Clarity

in Rehabilitation Measures

Harlan Hahn, PhD

717 - 11th Street

Santa Monica, CA 90402

Principal Investigator: Harlan Hahn, PhD

Public Contact: 310/395-5804; Fax: 310/434-9214

Project Number: H133F000030

Start Date: July 1, 2000

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 00 $55,000

Abstract: This project catalogs and analyzes the complex problems of identification and measurement of the rehabilitation of persons with physical disabilities. The scientific investigation of disability encompasses numerous disciplines, ranging from medicine and the health professions to engineering and education or vocational training. The proliferation of definitions of disability has

impeded the collection of comparable data. This has been exacerbated by a major shift in the paradigm of disability research and policy from “functional limitations” to a “minority group” understanding. Chronic health conditions may be the most pervasive and most difficult challenge confronting medical personnel in the future; it is necessary to examine all the current quality of life

measures to determine their possible value in the assessment of professional interventions concerning disability or chronic health problems.
Capacity Building for Rehabilitation Research Training 8-5

Fellowships (Distinguished)

Illinois

Transitioning to Employment Through Secondary Education Job

Development, Placement, and Negotiation of Supports

John S. Trach, PhD

University of Illinois

Department of Special Education

288 Education Building, M-708

1310 South Sixth Street

Champaign, IL 61820

j-trach@uiuc.edu

Principal Investigator: John S. Trach, PhD

Public Contact: 217/244-9016; Fax: 217/333-6555

Project Number: H133F000070

Start Date: August 21, 2000

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 00 $55,000

Abstract: This project investigates aspects of post-school employment success. It evaluates IEPs of

successfully employed people with disabilities to assess the participation of various stakeholders and

to determine the content of post-school outcome planning. It also uses an ethnographic process for

studying the implementation of transition planning and post-school outcomes. By using social

network mapping and a script analysis of participants with successful employment post-school, the

project describes the actions that lead to the identified outcomes. Finally, it does a comparative

analysis of successful and unsuccessful cases and identifies factors associated with post-school

employment success. This analysis is geared toward a description of practices, policies, and networks of support that promote employment success. The end result is the development of a new

outcome-oriented model for employment practices that will replace current legislative or theorybased models.
8-6 Capacity Building for Rehabilitation Research Training

Fellowships (Distinguished)

Maryland

Fundamental Disability Concepts and the Courts

Robert L. Burgdorf Jr.

804 Woodside Parkway

Silver Spring, MD 20910

robertburgdorf@cs.com

Principal Investigator: Robert L. Burgdorf Jr.

Public Contact: 301/585-9290; Fax: 202/274-5583

Project Number: H133F000067

Start Date: August 1, 2000

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 00 $55,000

Abstract: This project explores decisions by U.S. courts in the 1990s to determine what they mean

to the legal rights of people with disabilities. It investigates the extent to which the decisions are or

are not consistent with fundamental precepts regarding the nature of disability, the feasibility of

accommodation, and the appropriate role of individuals with disabilities in society. Tenets regarding

disability, persons with disabilities, and disability-related programs, services, and activities are

evaluated to understand the extent to which the rulings have reflected the following: (1) full inclusion and integration in society; (2) independent living; (3) economic and social self-sufficiency; (4)

spectrum of abilities; (5) the developmental concept of disability; (6) family support; and (7) the

continuum of and pliancy of activities, programs, and services.
Capacity Building for Rehabilitation Research Training 8-7

Fellowships (Merit) Fellowships Merit

Illinois

The Assessment of Consciousness Following a Traumatic Brain Injury

Among Veterans and Non-Veterans - Phase II

Theresa Louise-Bender Pape

339 East Chicago Avenue, Room 706

Chicago, IL 60611

t-pape@northwestern.edu

Principal Investigator: Theresa Louise-Bender Pape, DrPH

Public Contact: 312/503-0429; Fax: 312/503-2936

Project Number: H133F000013

Start Date: June 1, 2000

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 00 $45,000

Abstract: This project increases researchers’ ability to identify which factors are important for

neurological recovery from severe brain injury. Severe brain injury results in an altered state of

consciousness, which has been described as consisting of three sub-syndromes; a comatose state, a

vegetative state (VS) and a minimally conscious state (MCS). Knowledge regarding the progression

through these sub-syndromes to consciousness is limited because measures of cerebral functioning in

the unconscious mind have been inadequate. A neurobehavioral evaluation tool, the Disorders of

Consciousness Scale (DOCS (c)), has, however, been shown to be a promising clinical instrument

for producing a reliable and valid measure of cerebral functioning that reflects neurological functioning at one moment in time (static). The project refines and expands this static measure to reflect

dynamic cerebral functioning and applies the dynamic measure to an investigation of the recovery of

consciousness and the recovery of long-term functional skills.
8-8 Capacity Building for Rehabilitation Research Training

Fellowships (Merit)

Oklahoma

Evidence for Clinically-Useful Tests and Test Clusters of Lumbar,

Sacroiliac, and Hip Joint Movement Impairment in Patients

Categorized by Mechanical Low Back Pain Status, Low Back

Disability, and General Health Status

David E. Johnson, PhD

P.O. Box 26901

Oklahoma City, OK 73190-1090

dave-johnson@ouhsc.edu

Principal Investigator: David E. Johnson, PhD

Public Contact: 405/271-2131; Fax: 405/271-2432

Project Number: H133F000050

Start Date: August 1, 2000

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 00 $45,000

Abstract: This study estimates the clinical usefulness of low back regional movement tests and test

clusters in distinguishing persons categorized by self-reported low back disability, general health

status, and mechanical low back pain status. Standard clinical tests of lumbar, sacroiliac, and hip

movement are analyzed both as single tests and are combined into test clusters to identify those tests

and clusters with superior sensitivity and specificity. This study is important because it critically

evaluates the usefulness of low back regional movement tests and test clusters to distinguish persons

with low back disability and symptoms. In addition, it identifies movement tests and test clusters that

demonstrate sensitivity to change in relationship to measures of low back disability and symptoms.
Capacity Building for Rehabilitation Research Training 8-9

Fellowships (Merit)

Oklahoma

Project POP: Placement Options for Preschoolers with Developmental

Disabilities and Delays

M’Lisa Shelden

College of Allied Health

P.O. Box 26901

Oklahoma City, OK 73190-1090

mlisa-shelden@ouhsc.edu

Principal Investigator: M’Lisa Shelden, 405/271-2131

Public Contact: Fax: 405/271-2432

Project Number: H133F000023

Start Date: September 1, 2000

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 00 $45,000

Abstract: This project compiles and analyzes 9 years of data from the SoonerStart early intervention

program, on placements at age 3 and subsequent kindergarten placements, for 2,500 children with

developmental disabilities and delays in Oklahoma. Placement of 3-year-old children with developmental disabilities in most states, including Oklahoma, are most typically in segregated settings in

public school programs; current research has shown that inclusive education for students with disabilities has improved educational outcomes. Major concerns exist regarding the quality of early

intervention to school transitions and the impact of the transition process on inclusive education

opportunities for children aged 3-5 with developmental disabilities and delays. Data analysis for this

study includes frequency analysis to determine placements and logistic regression to provide data

regarding any trends in placements for Oklahoma preschoolers with developmental disabilities and

delays.
8-10 Capacity Building for Rehabilitation Research Training

Fellowships (Merit)

Pennsylvania

Rehabilitative Impact of Integrated Spiritual Care On An Inpatient

Oncology Unit

Rhoda M. Toperzer

641 Harts Ridge Road

Conshohocken, PA 19428

rhoda@aya.yale.edu

Principal Investigator: Rhoda M. Toperzer, 215/327-5298

Public Contact: Fax: 856/933-9515

Project Number: H133F000042

Start Date: September 1, 2000

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 00 $45,000

Abstract: The purpose of this study is to investigate the impact of augmented pastoral care hours on

an oncology patient care unit. The goal is to improve outcomes as measured by patient perception,

rehabilitative outcomes, and health care staff interaction. This is to be a non-denominational/interfaith intervention for patients from structured and unstructured religious/spiritual backgrounds, and

to be culturally sensitive. This study devotes increased pastoral care staffing on an inpatient oncology unit from 6 to 20 hours a week. The chaplain relates directly to patients. Additional pastoral care

is expected to augment staff support such that morale is improved, and that staff burnout and stress is

better addressed, resulting in overall enhanced patient care. Quantitative data measures the rehabilitative effects of the pastoral care presence on the unit. Medical outcome measures currently collected, such as length of stay, rehospitalization, and the use of pain medications may also decrease

with this intervention, resulting in patient benefit. Additionally, it is hoped that self-reported psychological measures, which examine the quality of life, hopefulness, and adjustment to cancer, also

improve with increased pastoral care. Significantly improved rehabilitation is the expected global

contribution of the pastoral care intervention.
Capacity Building for Rehabilitation Research Training 8-11

Fellowships (Merit)

Pennsylvania

Access to Rehabilitation Services and Technology for Children with

Special Health Care Needs: Findings and Recommendations for

Families and Providers

Margaret E. O’Neil

524 North 19th Street, #2

Philadelphia, PA 19130

moneil@drexel.edu

Principal Investigator: Margaret E. O’Neil, 267/330-0155; 215/762-1791

Public Contact: Fax: 215/762-3886

Project Number: H133F000062

Start Date: September 1, 2000

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 00 $45,000

Abstract: This project studies the complex array of health care services for children with special

health care needs, because access to rehabilitation services has become more challenging for these

children and their families in recent years. The project determines predictors of: (1) access to rehabilitation services based on families’ experiences with access to care for their children, and facilitates

the development of responsive and responsible health care systems; (2) performance of main insurance plans in providing therapy services, and (3) access to durable medical equipment/medical

technology for health care. Because families are their children’s most important health providers and

caregivers, it is essential that their experiences be included in identifying barriers and improving

access to care.
8-12 Capacity Building for Rehabilitation Research Training

Fellowships (Merit)

Pennsylvania

An Urban Response to IDEA ‘97: The Development and Examination

of a Community Partnership Approach to Support Paraprofessionals

in Urban Schools

Patricia H. Manz, PhD

Children’s Seashore House of Children’s Hospital of Philadelphia

3405 Civic Center Boulevard

Philadelphia, PA 19104

manz@email.chop.edu

Principal Investigator: Patricia H. Manz, PhD

Public Contact: 215/590-7675; Fax: 215/590-5637

Project Number: H133F000056

Start Date: September 1, 2000

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 00 $45,000

Abstract: This project develops and evaluates a model for preparing and supporting Community

Partners to provide general educational services for children who are at risk for, or are expressing,

learning disabilities. In urban schools, adapting general education programming to meet the requirements of IDEA’97 is particularly challenging. The employment of paraprofessionals is a promising

solution for increasing staff capacity to address the enormous need for support services in these

schools. Objectives include: (1) adapting the Reading Accelerated through Community Empowerment (Reading: ACE) program community-based tutorial program for children at risk for reading

disabilities, to a classroom-based intervention by Community Partners; (2) determining the impact of

Community Partners of the school’s capacity to instruct children with serious learning problems

effectively in the general education curriculum; (3) determining the effectiveness of the classroombased application of Reading ACE on first-grade children’s development of early literacy skills; and

(4) examining the impact of involving Community Partners in instructional roles on teachers’ and

families’ perceptions of school and family relationships. The inclusion of community members as

paraprofessionals (referred to as Community Partners) may offer other important advantages such as

improving student achievement and strengthening relationships among schools, families, and communities.
Capacity Building for Rehabilitation Research Training 8-13

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training Project in Rehabilitation

Services Research

Northwestern University

Rehabilitation Institute Research Corporation

Rehabilitation Services Evaluation Unit

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

http://www.rseu.northwestern.edu

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-4572

Project Number: H133P80014

Start Date: May 1, 1998

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $150,000; FY 99 $150,000; FY 00 $150,000

Abstract: This project develops a five-year fellowship program in rehabilitation services research at

Northwestern University’s Institute for Health Services Research and Policy Studies and the Department of Physical Medicine and Rehabilitation. It uses available expertise and collaborators to train

postdoctoral fellows in rehabilitation health services research. Over two years the program includes

course work, a practicum, original research, and grant writing. Fellows new to health services research have six core courses, as well as the two additional courses for all fellows. The first year

concentrates on beginning Masters in Public Health (MPH) courses. The second year includes

intermediate MPH course work plus electives. Each fellow is expected to develop an individual

research project by the end of the first training year and a publishable article by the end of the second

year in addition to submitting at least one grant application related to the research activity.
8-14 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Illinois

Rehabilitation Science for Engineers and Basic Scientists: An

Advanced Training Program

Northwestern University

Rehabilitation Institute of Chicago

345 East Superior Street, Room 1406

Chicago, IL 60611

w-rymer@nwu.edu

Principal Investigator: W. Zev Rymer, MD, PhD

Public Contact: 312/908-3381; Fax: 312/908-2208

Project Number: H133P990006

Start Date: February 1, 1999

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $148,323; FY 00 $148,752

Abstract: The goal of this program is to increase the number of PhD engineers and basic scientists

trained to perform research aimed at solving problems of people with disabilities. To meet this

objective, the project trains postdoctoral scientists in three areas of special expertise: musculoskeletal

biomechanics; neurorehabilitation; and prosthetics, orthotics, and biomaterials. Targeted technical

training is coordinated with intensive clinical instruction and experience. Postdoctoral trainees,

including scientists and engineers from minority or disability groups, are recruited by regional and

national advertising and via the Internet. Many training faculty are based within the Rehabilitation

Institute of Chicago, providing access to active clinical rehabilitation programs, and interaction both

with clinical faculty and people with disabilities.
Capacity Building for Rehabilitation Research Training 8-15

Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training

University of Illinois/Chicago

Department of Disability and Human Development

College of Health and Human Development Sciences

1640 West Roosevelt Road

Chicago, IL 60608-6904

theller@uic.edu

Principal Investigator: Tamar Heller, PhD

Public Contact: 312/413-1537; Fax: 312/996-6942

Project Number: H133P000005

Start Date: April 1, 2000

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 00 $150,000

Abstract: This project provides an intensive interdisciplinary postdoctoral training program for

disability and rehabilitation research scholars. The program combines immediate immersion in an

ongoing research program with a focused didactic training experience, providing trainees with

knowledge of the critical values, current issues, and innovative approaches in contemporary disability research. The training is offered through a cooperative effort of three units within the College of

Health and Human Development Sciences: the Department of Disability and Human Development,

Department of Occupational Therapy, and the Department of Physical Therapy. These departments

have an established record of successful collaboration in advanced training, including creating the

Interdisciplinary Doctor of Philosophy (PhD) in Disability Studies at UIC, a unique interdisciplinary

doctoral program that addresses the multidimensional nature of disability. A central theme of this

program is that the current fragmentation of knowledge regarding disability can be rectified only by

preparing future scholars and researchers who have a coherent, integrated, and in-depth knowledge

of the multidimensional nature of disabilities. All three academic units offering this advanced research training have senior faculty with established, ongoing research programs capable of guiding

postdoctoral training in three specialized content areas of disability research: disability measurement,

disability experience, and disability service and policy.
8-16 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Kansas

Rehabilitation Research Training Program

University of Kansas

Beach Center on Families and Disability

Special Education Department

3111 Haworth Hall

Lawrence, KS 66045

ann@ukans.edu

http://www.beachcenter.org

Principal Investigator: Ann Turnbull, PhD, 785/864-7608

Public Contact: Annette Lundsgaarde, 785/864-7601; Fax: 865/864-5825

Project Number: H133P70004

Start Date: July 1, 1997

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 97 $150,000; FY 98 $150,000; FY 99 $150,000; FY 00 $150,000

Abstract: This project increases the quantity of new postdoctoral and doctoral researchers and

ensures their competency along family-systems, life-span, and multicultural dimensions. Focusing

on families whose members have disabilities, the scholars become capable of conducting independent research related to: (1) the families studied; (2) rehabilitation and special education agencies,

systems, and processes; and (3) families and individuals from culturally and linguistically diverse

backgrounds who are served by those systems. The postdoctoral fellows collaborate with faculty

from the Beach Center, Special Education Department, and other faculty in learning and conducting

disability and family research for a full year. The doctoral trainees take their PhD degrees in special

education, majoring in family and disability studies and minoring in research methodologies.
Capacity Building for Rehabilitation Research Training 8-17

Advanced Rehabilitation Research Training Projects

Massachusetts

The Development, Implementation, and Evaluation of a Research

Training Program in Psychiatric Rehabilitation

Boston University

Sargent College of Health and Rehabilitation Services

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215

erogers@bu.edu

http://web.bu.edu/SARPSYCH

Principal Investigator: Sally E. Rogers

Public Contact: Marsha Ellison, 617/353-3549 (V); Fax: 617/353-7700

Project Number: H133P70014

Start Date: March 1, 1997

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 97 $147,489; FY 98 $147,489; FY 99 $147,489; FY 00 $147,489

Abstract: In this program, six individuals who possess doctoral-level clinical training are recruited

and provided with a broad-based, intensive 27-month training fellowship in rehabilitation research.

To provide an optimal training experience, three fellows are in residence at a time. Each fellow gains

competency in the following areas: psychiatric rehabilitation, research design/methodology, statistics, consumer issues (as they relate to applied research), the conduct of applied rehabilitation research, computer literacy, and grant and professional writing.
8-18 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Massachusetts

An Integrated Rehabilitation Engineering Research Training Program

Boston University

44 Cummington Street

Boston, MA 02215

jcollins@bu.edu

Principal Investigator: James J. Collins, PhD

Public Contact: 617/353-0390; Fax: 617/353-5462

Project Number: H133P990003

Start Date: February 1, 1999

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $149,915; FY 00 $149,915

Abstract: The goal of this project is to establish a clinically oriented, scientifically grounded educational program for training biomedical engineering (BME) postdoctoral fellows in rehabilitation

engineering. The overall objective of the program is to produce biomedical engineers who are capable of communicating and interacting with physician investigators in a significant and meaningful

manner, and who are capable of defining and solving clinically relevant problems in rehabilitation

engineering. The specific objectives of this project are: (1) to establish a core faculty and administrative structure for the training program; (2) to provide BME postdoctoral fellows with the opportunity

to participate in clinical educational rotations in physical medicine and rehabilitation (PM&R) and

geriatrics; (3) to provide BME postdoctoral fellows and medical trainees in geriatrics or PM&R with

the opportunity to collaborate on clinically relevant research projects; and (4) to establish a rehabilitation engineering curriculum that includes didactic sessions on clinical research methodology, as

well as a seminar series to expose trainees to leaders in the field and develop their own expertise in

giving scientific presentations. Accordingly, this program trains a new cadre of biomedical engineers

with the knowledge and skills to develop innovative rehabilitation technologies that directly benefit

individuals with disabilities.
Capacity Building for Rehabilitation Research Training 8-19

Advanced Rehabilitation Research Training Projects

Massachusetts

Rehabilitation Health Services Research Fellowship Program

Boston University

Sargent College of Health and Rehabilitation Sciences

635 Commonwealth Avenue

Boston, MA 02215

gquinn@bu.edu

http://www.bu.edu/cre/training/postdoc.html

Principal Investigator: Alan M. Jette, PhD, 617/353-2704

Public Contact: Ginger Quinn, 617/353-0550; Fax: 617/353-1355

Project Number: H133P990004

Start Date: June 1, 1999

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $149,999; FY 00 $149,429

Abstract: This program provides health services research training experience for doctoral-level

professionals from the rehabilitation disciplines. The primary goal is to qualify these fellows to

conduct independent, high quality, funded health services research on problems related to disability

and rehabilitation. Specific goals of the program include: (1) providing intensive, broad-based health

services research training consisting of didactic coursework offered by faculty of Boston University

to a total of six postdoctoral fellows over the course of the five-year project; (2) providing each

fellow with the opportunity to conduct rehabilitation health services research under the guidance of a

faculty mentor from Boston University; and (3) critically evaluating this rehabilitation health services research training program, including the recruitment, academic preparation, mentoring, and the

career development of participating fellows. Through state-of-the-art training and mentoring, the

project contributes to the creation of a cadre of highly skilled health services researchers equipped to

conduct research that improves the measurement of rehabilitation outcomes, evaluate new and

existing rehabilitation inventions, and broadly apply health services research methods to the improved organization and management of rehabilitation services in this changing health care environment.
8-20 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Michigan

The UMHS/MSU/AACIL Rehabilitation Research Training Program

University of Michigan

Department of Physical Medicine and Rehabilitation

Rehabilitation Psychology

1H241 - University Hospital

1500 East Medical Center Drive

Ann Arbor, MI 48109-0050

dgtate@umich.edu

http://www.med.edu/pmr/edu/arrtp

Principal Investigator: Denise G. Tate, PhD

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133P990014

Start Date: February 1, 1999

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $149,955; FY 00 $150,000

Abstract: Through this research training experience, fellows and resident trainees acquire and

enhance research skills, learn to collaborate effectively across important rehabilitation areas and

disciplines, learn to demonstrate a capacity to apply the results of research to the formulation of

disability policy, and develop skills that result in successful research proposals, thereby ensuring

continuance of outstanding rehabilitation research. Emphasizing the consumer-scientist-practitioner

model, this multidisciplinary research training program utilizes faculty and resources from both the

University of Michigan and Michigan State University, and the AACIL to train six postdoctoral level

professionals and ten Physical Medicine and Rehabilitation (PM&R) resident physicians in advanced

rehabilitation research. A variety of didactic and practical experiences make up this research training

program. These include participation in academic courses available at two university campuses,

research seminars, presentations and lectures at meetings and national conferences, and an opportunity to work collaboratively on research projects being conducted at the three sites. Fellows and

resident trainees select from a curriculum that focuses on four content areas: (1) vocational rehabilitation and assistive technology; (2) health/medical rehabilitation outcomes; (3) independent living

and community integration; and (4) socioeconomic aspects of rehabilitation.
Capacity Building for Rehabilitation Research Training 8-21

Advanced Rehabilitation Research Training Projects

Missouri

Research Enrichment Program for Physiatrists

University of Missouri-Columbia

Research Enrichment Program

Harry S. Truman Veterans’ Hospital

800 Hospital Drive, Room C227B

Columbia, MO 65201

williamsjan@health.missouri.edu

http://www.hsc.missouri.edu/~rep

Principal Investigator: Jerry C. Parker, PhD, 573/882-1632

Public Contact: Janet L. Williams, Project Coordinator, 573/882-1632; Fax: 573/884-4188

Project Number: H133P80009

Start Date: April 1, 1998

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 98 $150,000; FY 99 $150,000; FY 00 $150,000

Abstract: This project trains 30 physiatry residents and junior faculty in the basic methodological

skills and academic values required to conduct independent research projects. Participants in enrichment programs travel periodically to a central location (or locations) to receive intensive enrichment

experiences. Participants are carefully mentored through the successive steps required for an independent research project. Through the use of carefully designed teaching modules and individualized

instruction, ten participants per year are guided through the steps of an independent research project,

including understanding research design, developing skills for statistical collaboration, preparing

research manuscripts, presenting at scientific meetings, understanding peer review procedures, and

applying for extramural funds. Scholarships are used to cover travel expenses for participants, and

research accounts are used to defray the expenses associated with data collection. Over the course of

one year, participants travel to six centralized training locations. Participants are required to plan and

implement a thesis-like project in their home institutions and to present their research findings.
8-22 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

New Jersey

Advanced Multidisciplinary Training Program in Rehabilitation

Outcomes Research

University of Medicine and Dentistry of New Jersey Medical School

Department of Physical Medicine and Rehabilitation, B261

150 Bergen Street

Newark, NJ 07103

mark_v_johnston@compuserve.com

http://www.kmrrec.org

Principal Investigator: Mark V. Johnston, PhD, 973/243-6810

Public Contact: Heidi Workman, 973/243-2015; Fax: 973/243-6963

Project Number: H133P70011

Start Date: March 1, 1997

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $149,608; FY 98 $149,000; FY 99 $149,000; FY 00 $149,608

Abstract: Outcomes research designates a group of interrelated scientific methodologies and domains of knowledge that address issues of the effectiveness and cost-effectiveness of rehabilitation in

practice. This project redesigns the research training program to address the scientific basis of patient

outcomes and the effectiveness of rehabilitation in practice. Three areas of research and training,

each with several specific training tracks under experienced research mentors, include: (1) general

outcomes and rehabilitation services research, including functional assessment, practice guidelines,

disability economics, health policy, and disability sociology; (2) studies of community intervention

programs, including outpatient clinics, primary care, independent living programs, geriatric rehabilitation, and alternative medicine; and (3) medical and neuropsychological outcomes research, involving study of specific pathologies or interventions and their relationships to functional outcomes. The

program provides advanced research training to three or more PhD or MD fellows each year, usually

for a two-year term; a predoctoral student at the dissertation level may also be supported. The program is multidisciplinary, including all of the major disciplines associated with rehabilitation and

with outcomes research.
Capacity Building for Rehabilitation Research Training 8-23

Advanced Rehabilitation Research Training Projects

New York

Advanced Rehabilitation Research Training

Mount Sinai School of Medicine

One Gustave L. Levy Place

New York, NY 10029-6574

mary.hibbard@mssm.edu

http://www.mssm.edu/tbinet

Principal Investigator: Mary R. Hibbard, PhD

Public Contact: 212/659-9374; Fax: 212/348-5901

Project Number: H133P000001

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $138,006

Abstract: This project provides advanced rehabilitation research training to nine postdoctoral psychology fellows. Each fellow participates in the ongoing research of the NIDRR-funded Rehabilitation Research and Training Center (RRTC) on Community Integration of Individuals with Traumatic

Brain Injury (TBI). The goals of the training are to: (1) increase the number of researchers in the

field of rehabilitation, (2) enhance knowledge of rehabilitation research, (3) disseminate research

findings within the consumer community, and (4) train fellows to become part of an interdisciplinary

research team. The RRTC is a model program of Participatory Action Research (PAR) that focuses

on four core research areas: quality of life/outcome measurement, disability over the life span,

models of community integration, and psychosocial challenges of persons with a disability.
8-24 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Pennsylvania

Research Training in Rehabilitation Science with Special Emphasis on

Disability Studies

University of Pittsburgh

School of Health and Rehabilitation Sciences

Dean’s Office, 4029 Forbes Tower

Pittsburgh, PA 15260

cliffb+@pitt.edu

http://www.shrs.upmc.edu/new/FELLOWSHIPS.html

Principal Investigator: Clifford Brubaker, PhD

Public Contact: 412/647-1261; Fax: 412/647-1255

Project Number: H133P70013

Start Date: September 1, 1997

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 97 $141,327; FY 98 $147,327; FY 99 $147,327; FY 00 $141,327

Abstract: This program provides a plan for research training in the emerging academic discipline of

rehabilitation science. The program is based on a multidisciplinary approach to the study of topics

and issues of relevance to people with disabilities. A primary goal is to develop an increased capacity

for research in the general domain of rehabilitation science, and particularly in the area of disability

studies. The program of study is based on a challenging curriculum of didactic instruction, clinical

exposures, community interaction, and research experiences, and encompasses study and research

over a spectrum of scientific, technical, psychosocial, physical, physiological, cultural, ethical,

political, economic, and clinical issues.
Capacity Building for Rehabilitation Research Training 8-25

Advanced Rehabilitation Research Training Projects

Texas

Interdisciplinary Rehabilitation Research Training Program

University of Texas Medical Branch

301 University Boulevard

Galveston, TX 77555

kottenba@utmb.edu

http://www.sahs.utmb.edu/rehab

Principal Investigator: Kenneth J. Ottenbacher, PhD

Public Contact: 409/772-3002; Fax: 409/747-1623

Project Number: H133P990001

Start Date: July 1, 1999

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 99 $129,562; FY 00 $129,562

Abstract: This project provides postdoctoral research opportunities to qualified individuals interested in clinical and academic careers related to rehabilitation research. Three postdoctoral fellows

plan, conduct, and disseminate research in one of the following areas: Cognitive/Neurological

Rehabilitation, Applied Biomechanics/Physiology of Rehabilitation, and Geriatric Rehabilitation.

Each rehabilitation research fellow selects one of the three research areas and conducts clinical

investigations for up to three years. Outcomes include published research studies, presentations at

national scientific meetings, submission of grant proposals, completion of research-related courses,

training in techniques of dissemination, and the development of interdisciplinary research networks.

In addition to participating in clinical research activities, each fellow completes a series of core

courses and directed study related to interdisciplinary research and the ethics associated with scientific inquiry in rehabilitation. The activities of each postdoctoral fellow are directed and monitored

by a fellowship supervisor with a demonstrated ability to implement, conduct, and disseminate the

results of research investigations important to the advancement of rehabilitation science.
8-26 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Virginia

Research Training and Career Development Program

Virginia Commonwealth University

Department of Physical Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0542

jskreutz@hsc.vcu.edu

http://www.neuro.pmr.vcu.edu

Principal Investigator: Jeffrey S. Kreutzer, PhD

Public Contact: Jennifer Marwitz, 804/828-3704; Fax: 804/828-2378

Project Number: H133P70003

Start Date: September 1, 1997

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 97 $142,430; FY 98 $149,971; FY 99 $149,971; FY 00 $142,430

Abstract: This project increases the number of highly skilled rehabilitation research professionals

through an advanced research training program. The research training program is built upon an

existing network of research, clinical care, and teaching resources: on-campus resources include the

nation’s third largest teaching hospital, an NIH Head Injury Center, a Rehabilitation Research and

Training Center, and NIDRR traumatic brain injury and spinal cord injury model systems of care.

Program philosophy emphasizes interdisciplinary collaboration, creativity, quality, and diligence,

and emphasizes applied research; it provides training to individuals with advanced degrees who are

committed to a career in rehabilitation. A distinguished interdisciplinary faculty represents fields

within basic sciences, biostatistics and methodology, medicine, psychology, computing and telecommunications, allied health fields, and vocational rehabilitation.
Capacity Building for Rehabilitation Research Training 8-27

NIDRR Contracts NIDRR Contracts

Virginia

Technical Support for Computer and Other Related Activities

Conwal, Inc.

6858 Old Dominion Road

McLean, VA 22101

headquarters@conwal.com

http://www.conwal.com

Principal Investigator: Shelia Newman

Public Contact: 703/448-2300 (V); 703/448-3079 (TTY); Fax: 703/448-3087

Project Number: ED-98-CO-0004

Start Date: January 9, 1998

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 98 $500,000; FY 99 $962,042; FY 00 $360,430

Abstract: This project provides technical support to NIDRR for computer-based and other related

activities. Activities include data collection and tabulation, database and management information

system development, statistical analyses, literature reviews, small surveys, and focus group meetings. Active projects involve analysis and design of a management information system for NIDRR,

focus groups for planning the research agenda, and electronic dissemination.
8-28 Capacity Building for Rehabilitation Research Training

Richard Carroll, PhD, and Priscilla Lansing

Sanderson, PhD, Mentors

American Indian Rehabilitation Research and Training Center (H133B980049)

Arizona University Affiliated Programs

Institute for Human Development

Northern Arizona University

Flagstaff, AZ 86011-5630

520/523-4791 (V), 520/523-1695 (TTY)

Fax: 520/523-9127

priscilla.sanderson@nau.edu

http://www.nau.edu/~ihd/airrtc

John Brabyn, PhD, Mentor

Technologies for Children with Orthopedic Disabilities (H133E003001)

Los Amigos Research and Education Institute, Inc.

(LAREI)

Rancho Los Amigos National Rehabilitation Center

12841 Dahlia Street, Building 306

Downey, CA 90242

562/401-7994 (V), 562/803-4533 (TTY)

info@ranchorep.org

http://www.ranchorep.org/projects.html

Allen LeBlanc, PhD, Mentor

Disability Statistics Rehabilitation Research and

Training Center (H133B980045)

University of California/San Francisco

3333 California Street, Room 340

San Francisco, CA 94118

415/502-5217 (V, Wenger), 415/502-5216 (TTY)

distats@itsa.ucsf.edu

http://dsc.ucsf.edu

Gale G. Whiteneck, PhD, Mentor

Rocky Mountain Regional Brain Injury System

(H133A980020)

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80110

303/789-8308

Fax: 303/789-8441

kgerhart@craighospital.org

Robert Friedman, PhD, Mentor

Rehabilitation Research and Training Center for

Children's Mental Health (H133B990022)

University of South Florida

Florida Mental Health Institute

Tampa, FL 33612-3807

813/974-4661 (V), 800/955-8771 (TTY)

Fax: 813/974-6257

kutash@fmhi.usf.edu

http://rtckids.fmhi.usf.edu

Tamar Heller, PhD, Mentor

Rehabilitation Research and Training Center on

Aging with Developmental Disabilities

(H133B980046)

University of Illinois/Chicago

Department of Disability and Human Development

College of Health and Human Development Sciences

MC 626

Chicago, IL 60608-6904

800/996-8845 (V), 312/413-1860 (V), 312/413-0453

(TTY)

Fax: 312/996-6942

rrtcamr@uic.edu

http://www.uic.edu/orgs/rrtcamr

NIDRR Scholars 2000-2001

The Scholars program attempts to build research capacity by recruiting undergraduates with disabilities to work in NIDRR-funded Centers and projects and introduces them to disability and rehabilitation research issues. Scholars gain work experience and participating projects receive a small stipend. This program is an innovative approach aimed at generating interest in research careers for

persons with disabilities. For more information on these projects, see their listings in the Directory.
Capacity Building for Rehabilitation Research Training 8-29

Glen W. White, PhD, Mentor

Rehabilitation Research and Training Center on Full

Participation in Independent Living

University of Kansas Center for Research, Inc.

Schiefelbusch Institute for Life Span Studies

Lawrence, KS 66045

785/864-4095 (V/TTY)

Fax: 785/864-5063

rtcil@ukans.edu

http://www.lsi.ukans.edu/rtcil/rtcil.htm

J. Elton Moore, PhD, Mentor

Rehabilitation Research and Training Center on

Blindness and Low Vision (H133B60001)

Mississippi State University

P.O. Box 6189

Mississippi State, MS 39762662/325-2001 (V), 662/

325-8693 (TTY)

schaefer@ra.msstate.edu

http://www.blind.msstate.edu

Mark V. Johnston, PhD, Mentor

Northern New Jersey Traumatic Brain Injury System

(NNJTBIS)/NIDRR TBI Model Systems National

Database (H133A980030)

Kessler Medical Rehabilitation Research and Education Corporation

1199 Pleasant Valley Way

West Orange, NJ 07052

973/243-2015

tbi@kmrrec.org

http://www.kmrrec.org

Suzanne Bruyere, PhD, Mentor

Rehabilitation Research and Training Center for

Economic Research on Employment Policy for

Persons with Disabilities (H133B980038)

Cornell University

Program on Employment and Disability

School of Industrial and Labor Relations

Ithaca, NY 14853-3901

607/255-7727 (V), 607/255-2891 (TTY)

Fax: 607/255-2763

smb23@cornell.edu

http://www.ilr.cornell.edu/ped/projects/default.html

John Ditunno Jr., MD, Mentor

Demonstration of a Model Spinal Cord Injury System

Center (H133N000023)

Thomas Jefferson University

Jefferson Medical College

132 South 10th Street

Philadelphia, PA 19107-5244

215/955-6579

Fax: 215/955-5152

mary.call@mail.tju.edu

http://www.jeffersonhealth.org/spinalcordcenter

John D. Westbrook, PhD, Mentor

National Center for the Dissemination of Disability

Research (NCDDR) (H133A990008)

Southwest Educational Development Laboratory

211 East Seventh Street, Suite 400

Austin, TX 78701-3281

800/266-1832 (V/TTY)

Fax: 512/476-2286

lharris@sedl.org

State Technology Assistance

This program, funded under Title I of the the Assistive Technology Act of 1998, supports consumer-driven Grants to States. Currently there are 56 projects that provide

statewide, comprehensive, technology-related assistance for individuals with disabilities of all ages. The purpose of the program is to increase and improve access to

assistive technology devices and services through public awareness and information,

advocacy, outreach, technical assistance and training and interagency coordination.

Contents

Assistive Technology Technical Assistance Projects ........................................................................... 1

Alternative Financing Projects ............................................................................................................. 4

State Technology Assistance Projects ................................................................................................ 11

Protection and Advocacy for Assistive Technology .......................................................................... 67

State Technology Assistance Projects 9-1

Assistive Technology Technical Assistance Projects Assistive Technology Technical Assistance Projects

California

Assistive Technology Act Data Collection Project

InfoUse

2560 Ninth Street, Suite 216

Berkeley, CA 94710-2557

ljans@infouse.com

Principal Investigator: Lita Jans, PhD, 510/549-6509

Public Contact: 510/549-6520; Fax: 510/549-6512

Project Number: H224B990001

Start Date: September 30, 1999

Length: 48 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 99 $338,000; FY 00 $305,000

Abstract: The Assistive Technology (AT) Act Data Collection Project provides a Web-based performance standards reporting system that conforms to NIDRR policy and the requirements of the

Government Performance and Results Act (GPRA) of 1993. The data elements and measures are

developed through a broadly inclusive process involving the AT Act State Program grantees and

other key stakeholders. InfoUse also provides national and state estimates of the need for and use of

AT, as well as other useful information on the availability and use of AT devices and services, especially among underserved populations. In addition, the project provides descriptive and evaluative

information on model approaches that reduce fragmentation of devices and build the capacity of

organizations to deliver services. In conducting this project, InfoUse works closely with the 56 state

and territorial AT Act grantees, the Technical Assistance Projects to the AT Act State Program and

P&A Program grantees, the National AT Internet Site project, as well as consumers, service providers, advocates, and experts in the field.
9-2 State Technology Assistance Projects

Assistive Technology Technical Assistance Projects

New York

National Assistive Technology (AT) Advocacy Project

Neighborhood Legal Services, Inc.

Disability Law Unit

295 Main Street, Room 495

Buffalo, NY 14203-2473

atproject@nls.org

http://www.nls.org

Principal Investigator: James R. Sheldon Jr., Esq.

Public Contact: 716/847-0650; Fax: 716/847-0227

Project Number: H224B990002

Start Date: October 1, 1999

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 99 $199,774; FY 00 $172,858

Abstract: This project serves a primary customer base of attorneys and advocates who work for the

56 Protection and Advocacy for Assistive Technology (PAAT) projects. It provides: (1) advocacyrelated technical assistance (TA) by telephone, fax, E-mail, and mail to attorneys and advocates to

assist them in their advocacy-related activities; (2) management-related TA to protection and advocacy (P&A) managers and fiscal officers to assist them in their management and fiscal responsibilities associated with their PAAT grants as funded through NIDRR; (3) advocacy-related training

through an annual, three-day Project Conference, sessions at the annual National Association of

Protection and Advocacy Systems (NAPAS) conference, and distance training on special education,

Medicare, and other topics to be determined; (4) management-related training through its subcontractor, NAPAS, at four annual training events sponsored by NAPAS; (5) publications on the funding

of AT through a variety of funding sources, including newsletters, feature articles, booklets, and

training handouts; (6) a clearinghouse for documents related to the funding of AT through in-house

Resource Libraries containing administrative hearing decisions and a wide range of court-related

documents, including briefs and complaints; (7) a Web site containing information relating to the

funding of AT, including many of the Project’s publications, and links to other Web-based resources

to support AT advocacy efforts.
State Technology Assistance Projects 9-3

Assistive Technology Technical Assistance Projects

Virginia

Technical Assistance for Assistive Technology Act State Grant

Program Grantees

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)

1700 North Moore Street, Suite 1540

Arlington, VA 22209-1903

resnata@resna.org

http://www.resna.org/taproject

Principal Investigator: Lawrence C. Pencak

Public Contact: M. Nell Bailey, 703/524-6686, ext. 305 (V); 703/524-6639 (TTY); Fax: 703/524-

6630

Project Number: H224B990005

Start Date: October 1, 1999

Length: 36 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 99 $637,999; FY 00 $600,000

Abstract: The technical assistance (TA) project supports the 56 State Assistive Technology Act

Grantees. The purpose is to assist the state grantees in their efforts to reduce barriers and increase

access to assistive technology (AT) devices and services for consumers with disabilities of all ages

through advocacy and capacity-building initiatives. The TA project provides timely, responsive, and

proactive assistance using a comprehensive model for delivery. Delivery strategies include on-site

visits and training by expert consultants; national meetings focused on national policy issues; “tool

kits” filled with ideas, strategies, sample documents, and other information; on-line services and

communication tools; and others. All efforts are responsive to state grantees’ needs to build capacity

in changing systems in their state in order to increase access to AT for individuals with disabilities.
9-4 State Technology Assistance Projects

Alternative Financing Programs Alternative Financing Programs

Kansas

Assistive Technology for Kansans Alternative Financing Program

University of Kansas Center for Research, Inc.

Schiefelbusch Institute for Life Span Studies

2601 Gabriel Avenue

P.O. Box 738

Parsons, KS 67357

ssack@ukans.edu

http://www.atk.lsi.ukans.edu

Principal Investigator: Sara H. Sack, PhD, 316/421-8367

Public Contact: Assistive Technology for Kansans, 800/526-3648 (800/KAN DO IT, in state only);

316/421-8367 (V/TTY); Fax: 316/421-0954 (Fax/TTY)

Project Number: H224C000011

Start Date: October 1, 2000

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $742,576

Abstract: The Assistive Technology for Kansans project (ATK) and the Kansas Assistive Technology Cooperative (KATCO) are working together to expand personal financing options for the purchase of assistive devices or services. The alternative financing program is operated by KATCO, a

nonprofit organization, established and directed by persons with disabilities. KATCO currently

manages a revolving loan program and operates a loan guarantee program through both a regional

and a statewide credit union. The new program supports the expansion of the scope and utility of the

current assistive technology loan program. The program addresses issues related to the operation of

the two loan programs. Specifically, public awareness efforts assure that statewide coverage and

supports are in place to expand the capacity to make loans. Individual Development Accounts enable

individuals with disabilities to save money for assistive technology devices and services without

declaring the money saved as an asset. KATCO goals are: (a) to expand the consumer services

offered, including financial planning and credit restoration for persons with disabilities; (b) to expand its assistive technology cooperative services through strategies such as group purchasing and

buying in bulk; (c) to explore the feasibility of operating a multistate cooperative; and (4) to explore

the feasibility of operating a consumer run financial cooperative, generally known as a credit union.
State Technology Assistance Projects 9-5

Alternative Financing Programs

Maryland

The Assistive Technology Guaranteed Loan Program: Partnerships for

Maxium AT Access

State of Maryland

Maryland Technology Assistance Program

2301 Argonne Drive, Room T17

Baltimore, MD 21218

http://www.mdtap.org

Principal Investigator: Michael Dalto

Public Contact: Tony Rice, Assistant Director, 410/554-9230; 800/832-4827; Fax: 410/554-9237

Project Number: H224C000009

Start Date: October 1, 2000

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $500,000

Abstract: The Assistive Technology Guaranteed Loan Program provides loan guarantees and interest buy-downs for AT loans when the end user is a Maryland resident with a disability. Two lenders

currently participate in the program providing both guaranteed and non-guaranteed loans, while a

third offers only non-guaranteed loans. Two lenders provide discounted interest rates for non-guaranteed loans, eliminating the need for the program to buy-down these rates. The program is soliciting

additional partnerships and more flexible criteria to offer applicants a broader range of options and to

maximize the number of borrowers the program can serve. The program is administered by an

independent, community-based, volunteer Board of Directors. The Board oversees all operations,

including setting policy, approving and declining loan guarantees and interest subsidies, establishing

agreements with participating lenders and managing fiscal affairs. Staff provide information and

referral to applicants; handle administrative tasks related to loan guarantees and interest buy-downs;

and market the program through direct mail, partnerships with a broad coalition of disability groups

and service organizations, articles in newsletters and newspapers, and presentations on request. The

program has created partnerships to enhance AT access for borrowers. The Maryland AT Co-Op

provides exclusive discounts on AT purchase for borrowers to make AT more affordable. Benefits

InfoSource delivers assistance to enable borrowers to use SSI and SSDI work incentives to retain or

increase cash benefits while working or pursuing careers; the added income enables users to better

afford AT loan payments. The Maryland Centers for Independent Living offer counseling to borrowers referred through the program.
9-6 State Technology Assistance Projects

Alternative Financing Programs

Missouri

Assistive Techology Financial Loan Program - $how-Me Loans

State of Missouri

Missouri Assistive Technology Project

4731 South Cochise, Suite 114

Independence, MO 64055-6975

matpmo@qni.com

http://www.dolir.state.mo.us/matp

Principal Investigator: Diane Golden, PhD, 816/373-5193

Public Contact: 800/647-8557 (V, in state only)800/647-8558 (TTY, in state only); 800/647-8558

(TTY, in state only); 816/373-5193 (V); 816/373-9315 (TTY); Fax: 816/373-9314

Project Number: H224C000015

Start Date: October 1, 2000

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $550,000

Abstract: The Missouri Assistive Technology Council is establishing “$how-Me Loans”, a comprehensive statewide alternative financing program for assistive technology. The purpose of “$how-Me

Loans” is to empower individuals with disabilities to achieve greater independence, productivity, and

integration through increased access to assistive technology. The program is being designed to

provide loans with rates and terms more favorable than those available commercially. The funds may

be used to purchase assistive technology that enables a person with a disability to be more independent in a home, workplace, community, or other environment. Examples of assistive technology

include, but are not limited to, access modifications to a vehicle, such as a wheelchair lift or hand

controls; augmentative communications devices; stairway lifts; hearing aids; motorized wheelchairs;

and housing access modifications such as a wheelchair ramp, a roll-in shower, widening of doorways, and many others
State Technology Assistance Projects 9-7

Alternative Financing Programs

Pennsylvania

Alternative Financing Program

Temple University

Institute on Disabilities/UAP

1301 Cecil B. Moore Avenue, 423 Ritter Annex

Philadelphia, PA 19122

piat@astro.ocis.temple.edu

http://www.temple.edu/inst_disabilities/PIAT

Principal Investigator: Diane Nelson Bryen, PhD, 214/204-1356

Public Contact: Amy S. Goldman, 800/204-7428 (V); 800/750-7428 (TTY); 215/204-3862 (V);

215/204-1356 (V/TTY); Fax: 215/204-9371

Project Number: H224C000001

Start Date: October 1, 2000

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $500,000

Abstract: The Pennsylvania Assistive Technology Foundation (PATF), a community-based

501(c)(3) organization, was created by the Institute on Disabilities/UAP in response to the need for

an alternative financing mechanism. The program is administered by the Institute on Disabilities/

UAP and includes $500,000 in federal funds and $800,000 in nonfederal funds. Institute on Disabilities/UAP activities under the AFP grant include: (1) develop the PATF’s infrastructure to the point

that it has adequate staff and operational resources to operate independently of federal support; (2)

expand the present program through the identification of additional funds for loans of $3,000 and

more, and additional funds for the loan guarantee; (3) create a revolving loan program to allow for

“small” loans, e.g. those under $3,000, which the current lender deems too burdensome to handle;

(4) increase outreach and ease of access to the program, including the establishment of an network of

volunteer “application centers;” and (5) provide for external evaluation of the quality of customer

service, consumer choice, timeliness, and outcomes of the revolving and guarantee loan programs.
9-8 State Technology Assistance Projects

Alternative Financing Programs

Utah

Alternative Financing Program

Utah State University

Center for Persons with Disabilities

6588 Old Main Hill

Logan, UT 84322-6588

uatf@cpd2.usu.edu

http://www.uatf.org

Principal Investigator: Martin E. Blair, 435/797-3886

Public Contact: Daryl McCarty, 801/273-7239; Fax: 801/273-7239

Project Number: H224C000004

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $500,000

Abstract: The Utah Assistive Technology Foundation has a collaborative partnership with First

Security Bank to provide an interest buy-down and small grant program to help people with disabilities purchase AT devices and services. The activities are designed to expand the benefits and services

of the Foundation by: (1) decreasing the loan amount charged on loans for the purchase of AT to

approximately 1 percent of the loan value (currently 2 percent); (2) increase the grant amount applied

to loan principle for the purchase of AT; (3) increase the interest buy-down amount for modified

vehicles; (4) increase public awareness activities with regard to the Foundation; and (5) increase the

endowment fund of the Foundation to provide ongoing funding for the activities listed above. Expanding the current alternative financing system for AT devices and services enables greater numbers

of consumers with disabilities, their family members, personal assistants, advocates, and others to

increase independence in home, school, work and community settings. The public awareness activities are targeted to individuals with disabilities in both urban and rural areas of Utah.

Underrepresented populations such as Native American, Hispanic and the aging are the specific

focus of public awareness activities. The Foundation was developed by several entities in the state

under the direction of the Utah Assistive Technology Program (UATP), Utah’s AT Act state program.
State Technology Assistance Projects 9-9

Alternative Financing Programs

Virginia

Alternative Financing Technical Assistance Project

RESNA

1700 North Moore Street, Suite 1540

Arlington, VA 22209-1903

http://www.resna.org/aftap

Principal Investigator: Nancy Meidenbauer

Public Contact: 703/524-6686. ext. 304 (V); 703/524-6639 (TTY); Fax: 703/524-6630

Project Number: H224C000200

Start Date: October 1, 2000

Length: 24 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $200,000

Abstract: The Rehabilitation Engineering and Assistive Technology Society of North America

(RESNA) is creating an Alternative Financing Technical Assistance Project (AFTAP) to support

states in establishing and maintaining Alternative Financing Programs (AFP). The purpose of the

project is to provide technical assistance (TA) to states in developing AFPs that reduce barriers to the

availability of assistive technology (AT) and create new sources of funding for AT services and

devices for people with disabilities of all ages. Technical assistance and information dissemination

and utilization activities have been designed in order to achieve the project’s goals. These goals are:

(1) to provide timely, responsive, and proactive TA using a comprehensive model for delivery of TA;

and (2) to address the TA needs of the states currently receiving Title III funds and those states that

are in the process of preparing applications for AFP. The delivery strategies include on-site visits by

expert consultants; a national meeting focused on issues related to developing, implementing, and

maintaining financial loan programs; targeted research publications; and electronic services. A Webbased outcome data collection instrument enables collection of uniform data across state programs to

assist in determining the outcomes and impact of the availability of AT AFPs for individuals with

disabilities by region and across the county.
9-10 State Technology Assistance Projects

Alternative Financing Programs

Virginia

Alternative Financing Program

Virginia Department of Rehabilitative Services

Virginia Assistive Technology System (VATS)

8004 Franklin Farms Drive

P.O. Box K300

Richmond, VA 23288-0300

http://www.vats.org

Principal Investigator: Kenneth Knorr

Public Contact: 804/662-9995; Fax: 804/662-9478

Project Number: H224C000003

Start Date: January 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $1,000,000

Abstract: The Virginia Department of Rehabilitative Services (DRS)/ Virginia Assistive Technology

System (VATS) establishes an Alternative Financing Program (AFP) to increase access to and funding for assistive technology. The program uses the additional funding to increase and enhance the

existing loan program. DRS/VATS accomplishes this through a contract with a consumer-controlled

organization, the Assistive Technology Loan Fund Authority (ATLFA) and with SunTrust Bank to

provide loan financing and administration. DRS/VATS partners with all sixteen Virginia Centers for

Independent Living (CILs) to educate consumers of the AFP and provide consumer counseling to

applicants requiring assistance in device selection, application completion, identification of alternative financing sources for AT, as well as for financial counseling.
State Technology Assistance Projects 9-11

State Technology Assistance Projects State Technology Assistance Projects

Alabama

Alabama Statewide Technology Access and Response Project (STAR)

System for Alabamians with Disabilities

Alabama Department of Rehabilitation Services

2125 East South Boulevard

P.O. Box 20752

Montgomery, AL 36120-0752

tbridges@rehab.state.al.us

http://www.rehab.state.al.us/star

Principal Investigator: Steve Shivers

Public Contact: Ted Bridges, 800/782-7656 (V, in state only); 334/613-3480 (V); 334/613-3519

(TTY); Fax: 334/613-3485

Project Number: H224A30009

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 93 $520,670; FY 94 $540,000; FY 95 $580,000; FY 96 $536,900;

FY 97 $574,900; FY 98 $710,052; FY 99 $730,000; FY 00 $688,624

Abstract: This project addresses nine goals: (1) to establish an organizational structure that maximizes consumer participation; (2) to facilitate interagency collaboration in the development of

policies and procedures concerning technology services; (3) to maximize consumer participation at

all levels of project activities; (4) to establish a statewide consumer and family network; (5) to

develop a statewide consumer-responsive information and referral system; (6) to develop a public

awareness campaign to elevate the understanding of the benefits and use of technology for people

with disabilities; (7) to develop and provide technology training activities for consumers, their

families, professionals, employers, and the general public regarding technology-related issues; (8) to

advance positive policy and funding changes that improve the procurement of and access to technology devices and services; and (9) to develop and implement a project evaluation system and conduct

ongoing needs assessment.
9-12 State Technology Assistance Projects

State Technology Assistance Projects

Alaska

Assistive Technologies of Alaska

Alaska Department of Labor and Workforce Development

Division of Vocational Rehabilitation

1016 West Sixth, Suite 205

Anchorage, AK 99501

james_beck@labor.state.ak.us

http://www.labor.state.ak.us/ata/index.htm

Principal Investigator: Jim Beck

Public Contact: 800/478-4378 (V/TTY, in state only); 907/269-3569 (V/TTY); Fax: 907/269-3632

Project Number: H224A990001

Start Date: July 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $563,052; FY 91 $565,205; FY 92 $595,000; FY 93 $748,000;

FY 94 $749,298; FY 95 $749,298; FY 96 $693,618; FY 97 $731,618; FY 98 $548,714;

FY 99 $368,000; FY 00 $365,809

Abstract: Assistive Technologies of Alaska (ATA) is a systems change project funded under the

authority of the Tech Act. ATA has worked to establish a statewide, consumer-responsive system to

improve access to assistive technology. The project has responded to the needs of Alaskans with

disabilities by creating training tools and resource documents; establishing a guaranteed loan program; achieving passage of an assistive technology consumer protection law; and setting up a statewide library system for access to technology. In the last two years, the project is transitioning services to other permanent programs.
State Technology Assistance Projects 9-13

State Technology Assistance Projects

American Samoa

American Samoa Assistive Technology Service (ASATS) Project

Division of Vocational Rehabilitation

Department of Human Resources

Pago Pago, American Samoa 96799

EdPerei@yahoo.com

Principal Investigator: Pete P. Galea’i

Public Contact: Edmund Pereira, Program Director, 011/684/699-1529 (V); 011/684/233-7874

(TTY); Fax: 011/684/699-1376

Project Number: H224A30014

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $139,200; FY 94 $150,000; FY 95 $150,000; FY 96 $150,000;

FY 97 $150,000; FY 98 $210,000; FY 99 $105,000; FY 00 $150,000

Abstract: This project addresses four goals: (1) identification, training, and support of people with

disabilities to provide direction and guidance to the American Samoa Assistive Technology Project;

(2) development and implementation of a system for individual and program needs assessment for

assistive technology; (3) development and promotion, in collaboration and in partnership with

existing agencies, of a consumer responsive, culturally appropriate assistive technology servicedelivery system; and (4) development and implementation of a model multiagency information,

education, and public awareness system.
9-14 State Technology Assistance Projects

State Technology Assistance Projects

Arizona

Arizona Technology Access Program (AzTAP)

Northern Arizona University

Institute for Human Development

2715 North Third Street, Suite 104

Phoenix, AZ 85004

jill.oberstein@nau.edu

http://www.nau.edu/ihd/aztap

Principal Investigator: Jill Oberstein, Project Director

Public Contact: 800/477-9921 (V); 602/728-9532 (V); 602/728-9536 (TTY); Fax: 602/728-9535

Project Number: H224A40002

Start Date: October 1, 1994

NIDRR Officer: Judith Fein

NIDRR Funding: FY 94 $507,916; FY 95 $550,000; FY 96 $509,130; FY 97 $547,130;

FY 98 $675,531; FY 99 $654,103; FY 00 $654,103

Abstract: This program increases access to assistive technology (AT) services and devices for

people with disabilities and their families and facilitates the development of a coordinated, consumer-responsive AT service-delivery system. The program includes seven goals: (1) to establish a

program infrastructure that is consumer responsive and promotes system change; (2) to increase

consumer involvement; (3) to increase interagency collaboration and coordination; (4) to increase

awareness of the needs for, and efficacy of, AT services and devices; (5) to increase the competencies

and skills of providers and consumers of AT services and devices; (6) to improve program and fiscal

resources; and (7) to develop and implement protection and advocacy services in support of the

program. Priority activities include: information and referral, training and technical assistance,

outreach to underrepresented populations, funding and policy analysis, advocacy, and research.
State Technology Assistance Projects 9-15

State Technology Assistance Projects

Arkansas

Arkansas Increasing Capabilities Access Network (ICAN)

Arkansas Rehabilitation Services

Department of Workforce Education

2201 Brookwood Drive, Suite 117

Little Rock, AR 72202

sogaskin@ars.state.ar.us

http://www.arkansas-ican.org

Principal Investigator: Sue Gaskin

Public Contact: 800/828-2799 (V/TTY, in state only); 501/666-8868 (V/TTY); Fax: 501/666-5319

Project Number: H224A90020

Start Date: October 1, 1989

NIDRR Officer: Judith Fein

NIDRR Funding: FY 89 $503,811; FY 90 $506,078; FY 91 $551,078; FY 92 $725,000;

FY 93 $773,929; FY 94 $835,000; FY 95 $835,000; FY 96 $772,951; FY 97 $579,713;

FY 98 $386,476; FY 99 $386,476; FY 00 $386,476

Abstract: This project’s activities and objectives include establishing a clearinghouse for technology, expanding funding alternatives for technology, creating a consumer-responsive technology

system through legal remedies, expanding outreach programs, increasing system capacity through

education across professional and technical disciplines, and providing information and referral

services.
9-16 State Technology Assistance Projects

State Technology Assistance Projects

California

California Assistive Technology System (CATS)

California Department of Rehabilitation

Program Community Support Division

Independent Living and Systems Change Division

2000 Evergreen

P.O. Box 944222

Sacramento, CA 94244-2220

DLaw@dor.ca.gov

http://www.atnet.org

Principal Investigator: William Campagna, 916/263-8686 (V)

Public Contact: Colin Corby, 916/263-8677 (V/TTY); Fax: 916/263-8683

Project Number: H224A30008

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $550,000; FY 94 $680,000; FY 95 $900,000; FY 96 $833,000;

FY 97 $871,121; FY 98 $1,337,103; FY 99 $1,312,675; FY 00 $1,312,675

Abstract: This project is administered by a unit within the lead agency, Department of Rehabilitation. It is advised by an Assistive Technology Advisory Committee (ATAC), a majority of whose

members are consumers. The unit administers a transportation and assistive technology loan guarantee program. The unit contracts with other entities to provide advocacy services, outreach, and

training for underserved and rural populations; establish AT centers in rural counties; and establish a

nonprofit organization to conduct other project activities and continue the project when grant funding ends. The nonprofit unit (AT Network) operated by the California Foundation for Independent

Living Centers (CFILC) includes a toll-free AT information and referral service (800/390-2699 [V]

and 800/900-0706 [TTY], in state only), a project Web site, an AT news service, public awareness

and marketing activities, interagency coordination, and coordination of system change activities.
State Technology Assistance Projects 9-17

State Technology Assistance Projects

Colorado

Colorado Assistive Technology Project (CATP)

University of Colorado Health Sciences Center

Colorado University Affiliated Program

The Pavilion, A036 Box B140

1919 Ogden Street, Second Floor

Denver, CO 80218

cathy.bodine@uchsc.edu

http://www.uchsc.edu/catp

Principal Investigator: Cathy Bodine, Project Director

Public Contact: 800/255-3477 (in state only); 303/864-5100 (V); 303/864-5110 (TTY); Fax: 303/

864-5119

Project Number: H224A40014

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $540,140; FY 90 $542,571; FY 91 $577,571; FY 92 $609,538;

FY 93 $690,407; FY 94 $780,000; FY 95 $780,000; FY 96 $722,000; FY 97 $541,529;

FY 98 $361,019; FY 99 $361,019; FY 00 $361,018

Abstract: This project’s activities and objectives include a network of Technology Outreach Centers

throughout the state and a central assistive technology resource center. Project activities include

information, referral, public awareness, training, technical assistance, and electronic networking

linkages between local agencies and the state. Systems-change activities include a task force on

policy review and analysis, ongoing advocacy education, and direct advocacy services through a

contract with the state protection and advocacy system.
9-18 State Technology Assistance Projects

State Technology Assistance Projects

Connecticut

Connecticut Assistive Technology Project

Connecticut Department of Social Services

Bureau of Rehabilitation Services

25 Sigourney Street, 11th Floor

Hartford, CT 06106

cttap@aol.com

http://www.techact.uconn.edu

Principal Investigator: John M. Ficarro

Public Contact: 800/537-2549 (in state only); 860/424-4881 (V); 860/424-4839 (TTY); Fax: 860/

424-4850

Project Number: H224A20013

Start Date: October 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $525,000; FY 93 $554,000; FY 94 $580,000; FY 95 $520,000;

FY 96 $500,000; FY 97 $538,000; FY 98 $651,365; FY 99 $629,937; FY 00 $472,453

Abstract: This program includes a single point of entry, advocacy, information and referral, peer

counseling, and access to objective expert advice and consultation for people with disabilities. This

system is founded on the principles of ready access to available technology, informed choice, coordination, and maximum use of available resources and knowledge. The project created a low-interest

assistive technology revolving loan fund to serve as an alternative funding mechanism for individuals ineligible for existing funding streams. Finally, the program is supported by an extensive training,

education, and public awareness component. The Project is developing an equipment recycling

program, and is the primary sponsor of an annual assistive technology trade fair.
State Technology Assistance Projects 9-19

State Technology Assistance Projects

Delaware

Delaware Assistive Technology Initiative (DATI)

Center for Applied Science and Engineering

University of Delaware

Alfred I. duPont Hospital for Children

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899-0269

dati@asel.udel.edu

http://www.asel.udel.edu/dati

Principal Investigator: Beth A. Mineo Mollica, PhD, 302/651-6836

Public Contact: Sonja Simowitz, Project Coordinator, 800/870-DATI (V/TTY, in state only); 302/

651-6790 (V); 302/651-6794 (TTY); Fax: 302/651-6793

Project Number: H224A10005

Start Date: September 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $501,562; FY 92 $505,146; FY 93 $550,616; FY 94 $620,000;

FY 95 $620,000; FY 96 $573,934; FY 97 $611,928; FY 98 $695,827; FY 99 $521,870;

FY 00 $347,921

Abstract: The DATI project has established county resource centers in each of Delaware’s three

counties. These centers serve as information and equipment resource sites, offering short-term

equipment loans, training and demonstration workshops, and regular informational mailings. DATI

also offers a quarterly newsletter featuring articles on funding, equipment recycling, and general

assistive technology information. DATI assists consumers in locating funding for assistive technology devices and services. Collaboration among existing state agencies and consumer groups has

enhanced further assistive technology promotion throughout the state.
9-20 State Technology Assistance Projects

State Technology Assistance Projects

District of Columbia

University Legal Services AT Program for the District of Columbia

University Legal Services

300 I Street Northeast, Suite 200

Washington, DC 20002

atpdc@uls-dc.com

http://www.atpdc.org

Principal Investigator: Alicia C. Johns

Public Contact: Information Specialist, 202/547-0198 (V); 202/547-2657 (TTY); Fax: 202/547-

2662

Project Number: H224A30001

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $500,000; FY 94 $550,180; FY 95 $565,000; FY 96 $523,015;

FY 97 $557,503; FY 98 $632,503; FY 99 $616,143; FY 00 $616,143

Abstract: This project’s activities are designed to empower individuals with disabilities; to promote

consumer involvement and advocacy; and provide information, referral, and training as they relate to

accessing assistive technology services and devices; and to identify and improve access to funding

resources. Activities focus on increasing access to assistive technology devices and services for

school age children, public awareness, and demonstrations targeting people who are underserved.

The program collaborates with public and private entities, conducts advocacy training specifically

for consumers with disabilities, and implements systems change activities that increase access to,

provision of, and funding for assistive technology devices and services on a permanent basis.
State Technology Assistance Projects 9-21

State Technology Assistance Projects

Florida

Florida Alliance for Assistive Service and Technology (FAAST), Inc.

FAAST, Inc.

1020 East Lafayette Street, Suite 110

Tallahassee, FL 32301-4546

faast@faast.org

http://faast.org

Principal Investigator: Terry Ward, PhD, 850/414-1179

Public Contact: Ben Greve, Program Manager, 800/322-7881 (V/TTY, in state, information and

referral only); 850/487-3278 (V/TTY); 850/487-2850 (TTY/Fax); Fax: 850/487-2805

Project Number: H224A000001

Start Date: July 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $550,000; FY 93 $995,000 (includes carryover funding); FY 94 $730,000;

FY 95 $700,000; FY 96 $647,983; FY 97 $685,983; FY 98 $922,107; FY 99 $902,700;

FY 00 $675,509

Abstract: FAAST, designed by and for consumers in Florida, provides comprehensive consumer

outreach, awareness, and services. Its consumer-directed board is composed of 51-percent people

with disabilities or family members of individuals with disabilities. Services are provided through

four strategically located regional centers in Tallahassee, Jacksonville, Tampa, and Miami. FAAST’s

mission is to enhance the quality of life for all Floridians with disabilities by promoting access to,

awareness of, and advocacy for assistive technology. Through a seamless supportive network between Florida business and government, FAAST provides assistive technology products and services

that enable people with disabilities to participate fully in independent living, education, work, and

recreation.
9-22 State Technology Assistance Projects

State Technology Assistance Projects

Georgia

Georgia Tools for Life

Georgia Department of Human Resources

Division of Rehabilitation Services

2 Peachtree Street Northwest, Suite 35-413

Atlanta, GA 30303-3142

toolsforlife@mindspring.com

http://www.gatfl.org

Principal Investigator: Joy Kniskern

Public Contact: Clinton Fisher, 800/497-8665 (V, in state only); 404/657-3084 (V); 404/657-3095

(TTY); Fax: 404/657-3086

Project Number: H224A10001

Start Date: September 1, 1991

NIDRR Officer: Judith Fein

NIDRR Funding: FY 91 $519,474; FY 92 $520,000; FY 93 $585,000; FY 94 $729,924;

FY 95 $729,924; FY 96 $675,683; FY 97 $713,683; FY 98 $888,822; FY 99 $666,617;

FY 00 $444,411

Abstract: The Georgia Tools for Life program includes training at all levels, public awareness,

funding policy analysis, direct services, device lending libraries, and program evaluation. The hub of

Tools for Life is operated out of the Georgia Division of Rehabilitation Services. Tools for Life is

responsible for seven areas of coordination: (1) policy analysis and improved service delivery, (2)

coordination with consumers, (3) coordination among public and private organizations, (4) training

and technical assistance, (5) public awareness and an information and referral network, (6) advocacy,

and (7) consumer-responsive program evaluation. Tools for Life also coordinates four Technology

Resource Centers, the ReBoot Recycling Service, and is helping to create the Association of Georgians with Disabilities, a consumer association. The association includes financial services, an

advocacy group, a buying co-op, insurance options, and research and development based on member

needs. It also provides technical assistance to Touch the Future, a private, nonprofit organization

collaborating with the Tech Act initiatives in Georgia.
State Technology Assistance Projects 9-23

State Technology Assistance Projects

Guam

Guam System for Assistive Technology (GSAT)

University of Guam, UOG Station

University Affiliated Program on Developmental Disabilities

303 University Drive

Mangilao, GU 96923

gsat@ite.net

http://uog2.uog.edu/uap/gsat.html

Principal Investigator: Heidi E. Farra-San Nicolas, PhD, 671/735-2482 (V)

Public Contact: Ben Servino, Project Coordinator, 671/735-2490, ext. 3 (V); 671/734-8378 (TTY);

Fax: 671/734-5709

Project Number: H224A40003

Start Date: October 1, 1994

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 94 $150,000; FY 95 $150,000; FY 96 $150,000; FY 97 $150,000;

FY 98 $150,000; FY 99 $150,000; FY 00 $105,000

Abstract: This project has established a consumer-responsive, comprehensive, territory-wide program of technology-related assistance for people with disabilities to assist in overcoming Guam’s

unique challenges, including limited local funding, lack of trained personnel, few markets and

market incentives, limited information, and limited eligibility for specific federal funding. Additionally, the provision of assistive technology devices and services in the Pacific Basin presents many

unique challenges. Small island systems, such as Guam, have limited budgets, and a harsh tropicalisland environment (salt water, high humidity, and rough terrain) that creates difficulties for equipment repair and maintenance. The remote geographic location makes procurement, adjustments, and

custom modifications to assistive technology equipment extremely difficult and costly. The project

emphasizes and supports systems change and advocacy activities that serve to build capacity within

existing programs and with people with disabilities of all ages. GSAT is administered locally by the

University Affiliated Program on Developmental Disabilities under the Office of Academic Affairs

at the University of Guam.
9-24 State Technology Assistance Projects

State Technology Assistance Projects

Hawaii

Assistive Technology Resource Centers of Hawaii (ATRC)

Hawaii Department of Human Services, Vocational Rehabilitation,

and Services for the Blind and Physically Handicapped

414 Kuwili Street, Suite 104

Honolulu, HI 96817

atrc@atrc.org

http://www.atrc.org

Principal Investigator: Barbara Fischlowitz-Leong, Executive Director, 808/532-7110

Public Contact: 800/645-3007 (V/TTY, in state only), 808/532-7110 (V/TTY); Fax: 808/532-7120

Project Number: H224A10023

Start Date: October 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $530,926; FY 92 $530,926; FY 93 $530,926; FY 94 $660,895;

FY 95 $678,000; FY 96 $627,618; FY 97 $665,618; FY 98 $754,956; FY 99 $566,217;

FY 00 $377,478

Abstract: Assistive Technology Resource Centers of Hawaii (ATRC) provides information and

training on assistive technology devices, services, and funding resources. The organization conducts

presentations and demonstrations in the community to increase AT awareness and promote selfadvocacy among people with disabilities. ATRC offers classes on basic software and AT software at

the new Technology Center. Open lab time for personal computers is also available. ATRC operates

six equipment loan banks throughout Hawaii that give people the change to try out AT devices.

ATRC also offers equipment for purchase and financial assistance for qualified individuals. The

agency partners with a variety of groups including consumers, educators, state agencies, and private

organizations. An advisory council provides input from consumers and service providers. The

organization also collaborates with state agency officials through its Policy Coordinating Committee

who are appointed by the Governor.
State Technology Assistance Projects 9-25

State Technology Assistance Projects

Idaho

Idaho Assistive Technology Project

University of Idaho

129 West Third Street

Moscow, ID 83843-4401

seile861@uidaho.edu

http://www.ets.uidaho.edu/idatech

Principal Investigator: Ron Seiler, Project Director

Public Contact: Susan House, Information Specialist, 800/432-8324 (V/TTY); 208/885-3559 (V/

TTY); Fax: 208/885-3628

Project Number: H224A20017

Start Date: September 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $529,436; FY 93 $676,680 (includes carryover funding); FY 94 $620,000;

FY 95 $634,246; FY 96 $587,115; FY 97 $625,115; FY 98 $719,907; FY 99 $698,479;

FY 00 $539,000

Abstract: The Idaho Assistive Technology Project is managed by the Center on Disabilities and

Human Development at the University of Idaho. The project engages in systems change activities,

training, materials development, information dissemination, and advocacy activities directed at

increasing the availability of assistive devices and services to Idahoans who have disabilities. A

customer board directs the overall activities of the project and engages in a process of barrier identification and elimination. Major project components include training for consumers and service

providers about assistive technology, funding and loan programs for AT, advocacy, direct service

provision through five regional resource centers, and systems change that addresses policy, practice,

and legislation.
9-26 State Technology Assistance Projects

State Technology Assistance Projects

Illinois

Illinois Assistive Technology Project

IATP

1 West Old State Capitol Plaza, Suite 100

Springfield, IL 62701

iatp@fgi.net

http://www.iltech.org

Principal Investigator: Wilhelmina Gunther

Public Contact: Sherry Edwards, 800/852-5110 (V/TTY, in state only); 217/522-7985 (V/TTY);

217/522-9966 (TTY); Fax: 217/522-8067

Project Number: H224A90038

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $515,300; FY 90 $517,619; FY 91 $617,619; FY 92 $620,000;

FY 93 $750,000; FY 94 $923,271; FY 95 $923,271; FY 96 $833,121; FY 97 $640,997;

FY 98 $427,332; FY 99 $647,332; FY 00 $427,332

Abstract: This project’s activities and objectives include information and referral services highlighting available technology and services, comprehensive advocacy training for people with disabilities

and their families, and opportunities to explore assistive technology options in the demonstration

center. The project has statewide consumer involvement. Consumers have input into all facets of the

project’s operation, from establishing goals and objectives to implementing the activities.
State Technology Assistance Projects 9-27

State Technology Assistance Projects

Indiana

ATTAIN Inc. (Assistive Technology Through Action in Indiana)

ATTAIN Inc.

101 East Walnut Street

Washington, IN 47501

cfulford@attaininc.org

http://attaininc.org

Principal Investigator: Cris Fulford, Executive Director

Public Contact: Lisa Newkirk, 812/254-7305 (V); 888/288-9319 (TTY); Fax: 812/254-7306

Project Number: H224A00027

Start Date: July 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $521,480; FY 91 $541,277; FY 92 $565,277; FY 93 $660,288;

FY 94 $726,892; FY 95 $726,892; FY 96 $672,877; FY 97 $710,877; FY 98 $533,158;

FY 99 $355,439; FY 00 $355,439

Abstract: Assistive Technology Through Action in Indiana (ATTAIN) has primary responsibility for

the Indiana Technology-Related Assistance Program. The project promotes: community-based,

technology-related services and systems change through outreach and training; advocacy on funding

issues; policy review; position statements; and assessments.
9-28 State Technology Assistance Projects

State Technology Assistance Projects

Iowa

Iowa Program for Assistive Technology

Iowa University Affiliated Program

University Hospital School

100 Hawkins Drive, Room S295

Iowa City, IA 52242-1011

mary-quigley@uiowa.edu

http://www.uiowa.edu/infotech

Principal Investigator: Jane Gay, RN; Mary Quigley, JD, 319/356-4402 (V, Quigley); 319/356-

4463 (Gay)

Public Contact: Information Specialist, 800/331-3027 (V/TTY); Fax: 319/384-9273

Project Number: H224A00028

Start Date: April 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $557,322; FY 91 $594,287; FY 92 $595,289; FY 93 $700,314;

FY 94 $735,000; FY 95 $735,000; FY 96 $680,382; FY 97 $718,382; FY 98 $538,787;

FY 99 $359,191; FY 00 $359,191

Abstract: This project conducts awareness and training programs and collaborates with other systems-change efforts. The information and referral portion of the Iowa program, InfoTech, provides

information on new and used adaptive equipment, funding information, and a newsletter. The goals

and objectives of the Iowa Program are developed and implemented through an extensive process

that involves consumers, advocacy organizations, private and public service providers, regional and

state agencies, third-party payers, and entities not traditionally associated with assistive technology

services.
State Technology Assistance Projects 9-29

State Technology Assistance Projects

Kansas

Assistive Technology for Kansans Project

University of Kansas

Life Span Institute

2601 Gabriel Avenue

P.O. Box 738

Parsons, KS 67357

ssack@ukans.edu

http://www.atk.lsi.ukans.edu

Principal Investigator: Charles R. Spellman, EdD; Sara H. Sack, PhD

Public Contact: 800/526-3648 (800/KAN DO IT, in state only); 316/421-8367 (V/TTY); Fax: 316/

421-0954 (Fax/TTY)

Project Number: H224A30013

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 93 $515,000; FY 94 $529,999; FY 95 $550,000; FY 96 $513,758;

FY 97 $551,758; FY 98 $665,404; FY 99 $643,976; FY 00 $643,876

Other funding: FY 93 $89,029 (Kansas Rehabilitation Services); FY 95 $395,000 (KRS);

FY 96 $780,000 (KRS)

Abstract: Through consumer involvement and leadership by the Kansas University Program at

Parsons, this project engages in activities that are designed to result in laws, regulations, policies,

practices, or organizational structures that promote consumer-responsive programs that increase

access to assistive technology devices and services. Through subcontracts with organizations across

the state, the project operates five Regional Assistive Technology Access Sites, provides a toll-free

number that connects callers directly to the appropriate Regional Access Site, manages an Interagency Equipment Loan System, coordinates the statewide assistive technology distance learning

program, conducts a three-day Assistive Technology Conference, and leads a policy analysis and

legislative alert effort.
9-30 State Technology Assistance Projects

State Technology Assistance Projects

Kentucky

Kentucky Assistive Technology Services (KATS) Network

KATS Network Coordinating Center

8412 Westport Road

Louisville, KY 40242

katsnet@iglou.com

http://www.katsnet.org

Principal Investigator: J. Chase Forrester, JD, Project Director

Public Contact: Ronji Dearborn, 800/327-5287 (V/TTY, in state only); 502/327-0022 (V/TTY);

502/327-9855 (TTY); Fax: 502/327-9974

Project Number: H224A90002

Start Date: October 1, 1989

NIDRR Officer: Judith Fein

NIDRR Funding: FY 89 $535,102; FY 90 $537,510; FY 91 $577,102; FY 92 $680,000;

FY 93 $710,108; FY 94 $800,000; FY 95 $800,000; FY 96 $740,552; FY 97 $555,414;

FY 98 $370,276; FY 99 $370,276; FY 00 $370,276

Abstract: This project is a statewide network of organizations and individuals connecting to create a

consumer-driven, collaborative system to make assistive technology information, devices, and

services easily obtainable for people of any age or disability. In addition to its primary role in the

development and coordination of activities among state agencies and organizations that facilitate

access to, provision of, and funding for assistive technology devices and services, the Coordinating

Center staff conducts information and referral services and disseminates information. Associated

organizations provide training activities, assessments and evaluations, consultations on appropriate

technologies, technical assistance, operate an equipment recycling and lending program and implement a low interest loan program. Consumers represent a majority of the advisory board membership.
State Technology Assistance Projects 9-31

State Technology Assistance Projects

Louisiana

Louisiana Assistive Technology Access Network (LATAN)

LATAN

P.O. Box 14115

Baton Rouge, LA 70898-4115

cpourciau@latan.org

http://www.latan.org

Principal Investigator: Julie M. Nesbit

Public Contact: Clara Pourciau, 800/270-6185 (V/TTY); 225/925-9500 (V/TTY); Fax: 225/925-

9560

Project Number: H224A10028

Start Date: September 1, 1991

NIDRR Officer: Judith Fein

NIDRR Funding: FY 91 $502,566; FY 92 $505,398; FY 93 $555,398; FY 94 $631,095;

FY 95 $660,000; FY 96 $610,955; FY 97 $648,955; FY 98 $791,475; FY 99 $593,606;

FY 00 $395,738

Abstract: Louisiana Assistive Technology Access Network (LATAN) is an advocacy and systems

change project whose mission is to ensure that Louisiana citizens with functional limitations who

want assistive technology have what they need and are able to use it. Major program initiatives

include: (1) consumer involvement, empowerment, and training; (2) advocacy and systems change;

(3) outreach; (4) interagency coordination; and (5) provider training. Area programs provide the

opportunity for LATAN to reach rural and inner-city areas, where a majority of ethnic minorities and

elderly reside. The project provides information about aids that enable an individual to live at home,

work, learn, and recreate. It also provides information about the services needed to acquire and use

these assistive devices. Members of the project staff provide training that empowers individuals to

self-advocate successfully for the aids they need. LATAN also advocates for increased access to

assistive technology through public and private agencies and entities. Training is provided to increase the skills of case managers, personal service assistants, rehabilitation counselors, educators,

therapists, and other providers and support personnel to recognize the benefits and uses of, and the

need for, various types of assistive technology devices and services. A consumer board directs

LATAN.
9-32 State Technology Assistance Projects

State Technology Assistance Projects

Maine

Maine Consumer Information and Technology Training Exchange

(Maine CITE)

Maine CITE Coordinating Center

46 University Drive

Augusta, ME 04330

kpowers@maine.edu

http://www.mainecite.org

Principal Investigator: David Noble Stockford, 207/287-5950 (V); 207/287-2550 (TTY)

Public Contact: Kathleen Powers, Project Director, 207/621-3195 (V); 207/621-3482 (TTY); Fax:

207/621-3193

Project Number: H224A90047

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $541,876; FY 90 $544,315; FY 91 $594,315; FY 92 $650,000;

FY 93 $750,000; FY 94 $845,000; FY 95 $845,000; FY 96 $782,000; FY 97 $586,656;

FY 98 $391,104; FY 99 $391,104; FY 00 $391,104

Abstract: This project collaborates with various Maine organizations, including centers for independent living, parent training agencies, and nonprofit community programs, to build a statewide network of information and resources on assistive technology. Project goals are: to promote broader

understanding of the benefits and wider availability of assistive technology; to educate people with

disabilities, their families, professionals, and general public in purchasing and using assistive technology; to promote self-advocacy among people with disabilities to shape public policy that promotes assistive technology and universal design; and to assist public and private institutions, organizations, and associations in providing the knowledge, skills, and competencies related to assistive

technology and universal design to their constituents.
State Technology Assistance Projects 9-33

State Technology Assistance Projects

Maryland

Maryland Technology Assistance Program (MD TAP)

Maryland Governor’s Office for Individuals with Disabilities

2301 Argonne Drive, Room T17

Baltimore, MD 21218

rasinski@clark.net

http://www.mdtap.org

Principal Investigator: Paul Rasinski, Project Director

Public Contact: Patrick McCurdy, 800/832-4827 (800/TECH TAP, V/TTY); 410/554-9230 (V/

TTY); Fax: 410/554-9237

Project Number: H224A90019

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $500,000; FY 90 $502,250; FY 91 $502,250; FY 92 $671,029;

FY 93 $770,000; FY 94 $825,000; FY 95 $825,000; FY 96 $763,694; FY 97 $572,771;

FY 98 $381,000; FY 99 $381,847; FY 00 $381,847

Abstract: The Maryland Technology Assistance Program (MD TAP) is a part of the Governor’s

Office for Individuals with Disabilities serving individuals of all ages and disabilities. Activities of

this program include conducting a public awareness campaign with a toll-free phone number, maintaining lending libraries of information and AT devices, and equipment demonstration centers. The

program administers a loan guarantee project, that makes possible low-interest loans for AT to

individuals with disabilities. The program grants funds to private organizations to provide regional

coverage of the state in relation to AT issues.
9-34 State Technology Assistance Projects

State Technology Assistance Projects

Massachusetts

Massachusetts Assistive Technology Partnership

Children’s Hospital

1295 Boylston Street, Suite 310

Boston, MA 02215

matp@matp.org

http://www.matp.org

Principal Investigator: Marylyn Howe, Project Director, 617/355-7167 (TTY)

Public Contact: Patricia Hill, 800/848-8867 (V/TTY, in state only); 617/355-7153 (V); 617/355-

7301 (TTY); Fax: 617/355-6345

Project Number: H224A00036

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $563,998; FY 91 $593,993; FY 92 $624,062; FY 93 $725,764;

FY 94 $811,962; FY 95 $811,962; FY 96 $751,592; FY 97 $789,592; FY 98 $592,194;

FY 99 $592,194; FY 00 $397,796

Abstract: The Massachusetts Assistive Technology Partnership (MATP) is a consumer-responsive,

cross-disability, multicultural, statewide project that conducts activities to increase access to assistive

technology for people with disabilities. Activities include public awareness, information services,

training and technical assistance, funding and policy analysis, advocacy, and related work to improve

services and promote involvement of people with disabilities in assistive technology. Through

regional Peer Assistive Technology Programs, MATP provides information and referral, peer networking, training, and individual and systems advocacy. The MATP works closely with people with

disabilities, family members, providers, and state agencies to identify needs and pursue change in the

assistive technology service-delivery system. The project publishes an assistive technology newsletter, pursues remedies of funding and policy barriers, provides training on a range of assistive technology available and resources for obtaining assistive technology, pursues improvement of equipment standards, promotes increased availability of services, promotes increased involvement of

people with disabilities in assistive technology services and policy making, and coordinates with

related projects in Massachusetts, regionally, and nationally.
State Technology Assistance Projects 9-35

State Technology Assistance Projects

Michigan

Michigan AT Project

Michigan Disability Rights Coalition

740 West Lake Lansing Road, Suite 400

East Lansing, MI 48823

roanne@sprynet.com

http://www.copower.org/At/index.htm

Principal Investigator: Sheryl Avery-Meints, Project Director

Public Contact: RoAnne Chaney, 800/760-4600 (V/TTY, in state only); 517/333-2477 (V/TTY);

Fax: 517/333-2677

Project Number: H224A50009

Start Date: September 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $550,000; FY 93 $885,881 (includes carryover funding); FY 94 $610,000;

FY 95 $850,000; FY 96 $786,837; FY 97 $824,837; FY 98 $1,033,953; FY 99 $1,012,525;

FY 00 $759,394

Abstract: Michigan’s AT Project focuses on building the capacity of community-based, local organizations to advocate for the use of assistive technology as a tool for inclusion in all aspects of life.

Currently, Michigan’s AT Project has projects around the state that are creating genuine systems

change on a local basis. The AT Project also supports a Web-based system of AT resources and

communication networks.
9-36 State Technology Assistance Projects

State Technology Assistance Projects

Minnesota

Minnesota System of Technology to Achieve Results (STAR) Program

State of Minnesota Department of Administration

Governor’s Advisory Council on Technology for People with Disabilities

360 Centennial Building

658 Cedar Street

St. Paul, MN 55155

star.program@state.mn.us

http://www.admin.state.mn.us/assistivetechnology

Principal Investigator: Ronna Linroth

Public Contact: 800/657-3862 (V, in state only); 800/657-3895 (TTY, in state only); 651/296-2771

(V); 651/296-8478 (TTY); Fax: 651/282-6671

Project Number: H224A90041

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $500,000; FY 90 $502,250; FY 91 $567,250; FY 92 $700,000;

FY 93 $750,000; FY 94 $820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $694,268;

FY 98 $569,300; FY 99 $379,500; FY 00 $379,500

Abstract: This project: (1) provides a toll-free information service for residents of Minnesota and

Iowa; (2) distributes brochures and other literature; (3) hosts workshops and forums; (4) provides

opportunities for consumer involvement; and (5) assists individuals seeking funding. STAR advocates for policy, practice, and legislative change regarding access to assistive technology; contracts

for mobile outreach projects and legal advocacy services; and provides grants on a regional basis.
State Technology Assistance Projects 9-37

State Technology Assistance Projects

Mississippi

Mississippi Project START

(Success Through Assistive/Rehabilitative Technology)

Mississippi Department of Rehabilitation Services

P.O. Box 1698

Jackson, MS 39215-1000

spower@mdrs.state.ms.us

Principal Investigator: Stephen Power, Project Director

Public Contact: Eugenie Bradshaw, 800/852-8328 (V/TTY, in state only); 601/987-4872 (V/TTY);

Fax: 601/364-2349

Project Number: H224A00032

Start Date: May 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $521,285; FY 91 $530,000; FY 92 $554,000; FY 93 $594,714;

FY 94 $619,430; FY 95 $619,430; FY 96 $573,400; FY 97 $611,400; FY 98 $458,550;

FY 99 $305,700; FY 00 $305,700

Abstract: Project START is a multifaceted, collaborative effort. The primary components include:

(1) an advisory council that allows for consumer input and the involvement of other relevant agencies, organizations, and groups; (2) an information clearinghouse that provides people with disabilities, their families, service providers, and other interested parties with information regarding available assistive technology devices and services; (3) a training program that ensures that service

provider personnel, people with disabilities, and other relevant parties are familiar with the utility

and potential of assistive technology devices; (4) a model service-delivery system that acts as a

referral source and concurrent technical resource to existing assistive technology providers, and

provides assistive technology services to people with disabilities ineligible for existing programs;

and (5) an equipment loan program that makes assistive devices available to people with disabilities

for trial periods, for use while their personal equipment is being repaired or replaced, and to service

providers for training and demonstration purposes.
9-38 State Technology Assistance Projects

State Technology Assistance Projects

Missouri

Missouri Assistive Technology Project

Missouri Department of Labor and Industrial Relations

Governor’s Council on Disability

4731 South Cochise, Suite 114

Independence, MO 64055-6975

matpmo@qni.com

http://www.dolir.state.mo.us/matp

Principal Investigator: Diane Golden, PhD, Project Director

Public Contact: 800/647-8557 (V, in state only); 800/647-8558 (TTY, in state only); 816/373-5193

(V); 816/373-9315 (TTY); Fax: 816/373-9314

Project Number: H224A30015

Start Date: September 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $524,488; FY 92 $526,988; FY 93 $550,801; FY 94 $667,121;

FY 95 $675,000; FY 96 $689,639; FY 97 $727,639; FY 98 $878,221; FY 99 $658,666;

FY 00 $439,111

Abstract: The primary components of this project include: (1) an advisory council established to

provide input from consumers and relevant state agencies; (2) legislative and policy initiatives

including an equipment loan program, an equipment distribution program through the state relay

service that includes adaptive computer equipment, a no- or low-interest loan program to purchase

assistive technology, health care coverage for mandatory infant hearing screenings and initial amplification devices, Medicaid coverage of augmentative communication devices for adults, an assistive

technology lemon law, sales tax exemptions on assistive technology, managed care reform, and

accessible state information technology; (3) an information and referral service; and (4) individual

advocacy services.
State Technology Assistance Projects 9-39

State Technology Assistance Projects

Montana

MonTECH

University of Montana

Rural Institute on Disabilities

634 Eddy Avenue

Missoula, MT 59812

montech@selway.umt.edu

http://rudi.montech.umt.edu

Principal Investigator: Gail McGregor, Project Director

Public Contact: 800/732-0323 (V/TTY); 406/243-5676 (V/TTY); Fax: 406/243-4730

Project Number: H224A10002

Start Date: September 30, 1991

NIDRR Officer: Judith Fein

NIDRR Funding: FY 91 $550,553; FY 92 $550,553; FY 93 $590,553; FY 94 $675,258;

FY 95 $673,058; FY 96 $624,080; FY 97 $663,080; FY 98 $752,408; FY 99 $564,306;

FY 00 $376,204

Abstract: This project develops a comprehensive statewide system of technology-related assistance

to ensure that all Montanans with disabilities have equitable access to the assistive technology

devices and services they need. Emphasis is on eliminating barriers to obtaining assistive technology, enacting policy change, improving awareness, strengthening consumer and provider networks,

and increasing access to funding. The Montana Consortium for Assistive Technology (MCAT)

serves as the program advisory board and offers opportunities for consumer participation. Activities

currently underway include: (1) a comprehensive equipment demonstration and evaluation center

offering hands-on experience with devices to both consumers and service providers; (2) an assistive

technology loan/lease clearinghouse; (3) an information and assistance service that includes maintenance of a comprehensive database of Montana service programs; (4) focused outreach activities

with the state’s largest minority group, Native Americans; and (5) an Internet Web site. Other activities include a low-interest financial loan program for consumers who do not qualify for other funding

sources, and specialized training programs to increase the skills of professionals providing assistive

technology services.
9-40 State Technology Assistance Projects

State Technology Assistance Projects

Nebraska

Nebraska Assistive Technology Partnership

Nebraska Department of Education

Division of Vocational Rehabilitation

5143 South 48th Street, Suite C

Lincoln, NE 68516-2204

atp@atp.state.ne.us

http://www.nde.state.ne.us/ATP/TECHome.html

Principal Investigator: Mark Schultz, Project Director

Public Contact: Kathryn Kruse, 888/806-6287 (V/TTY, in state only); 402/471-0734 (V/TTY); 402/

471-0735 (V/TTY); Fax: 402/471-6052

Project Number: H224A90040

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $523,000; FY 90 $525,352; FY 91 $570,352; FY 92 $730,000;

FY 93 $766,984; FY 94 $820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $569,300;

FY 98 $379,533; FY 99 $379,533; FY 00 $379,533

Abstract: The Partnership provides statewide assistive technology and home modification services

for Nebraskans of all ages and disabilities. The Partnership is a collaboration of private, nonprofit,

and governmental organizations and agencies working together to create a seamless, comprehensive,

statewide assistive technology program. Collaborators include Nebraska’s departments of Education,

Health and Human Services, Developmental Disabilities, Economic Development, and Vocational

Rehabilitation. The collaboration has resulted in funding for services to help meet the diverse needs

of consumers regarding education, employment, housing, and independent living. These services

include assessment, evaluation, fabrication, repair, maintenance, and training. Cost savings have also

resulted due to equipment recycling, identification of appropriate equipment, and cost sharing between partnering agencies. In addition, the Partnership helps to support Demonstration Centers,

utilizes a Peer Support Network, and sponsors special events, including Technology Expos. Training

materials have been developed for educators (3 hour instructional unit and special education technical manual), health care professionals, and insurance reviewers.
State Technology Assistance Projects 9-41

State Technology Assistance Projects

Nevada

Nevada Assistive Technology Collaborative

Nevada Rehabilitation Division

Community-Based Services

711 South Stewart Street

Carson City, NV 89710

pgowins@govmail.state.nv.us

http://www.state.nv.us/detr/rehab/reh_pgbs.htm#State Assistive Technology Act Program

Principal Investigator: Donny Loux

Public Contact: Paul Haugen, 888/337-3839 (V, in state only); 775/687-4452 (V); 775/687-3388

(TTY); Fax: 775/687-3292

Project Number: H224A00037

Start Date: July 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $560,884; FY 91 $580,047; FY 92 $594,368; FY 93 $624,588;

FY 94 $675,046; FY 95 $675,046; FY 96 $624,883; FY 97 $662,883; FY 98 $497,162;

FY 99 $331,442; FY 00 $331,442

Abstract: The Nevada Project is accomplishing 15 major goals in systems change that have been

established in response to identified needs in consultation with the state’s consumer-directed executive board. Additionally, the project trains 400 consumers in the use of technology; a minimum of

1,800 consumers in self-advocacy skills; 550 families in applying technology to the needs of a

family member with a disability; and a minimum of 5,730 cross-disciplinary university undergraduates in the fields of medicine, health, education, rehabilitation, gerontology, engineering, speech

pathology and audiology, and counseling in assistive technology and cultural awareness. The project

provides information and referral and other awareness services to a minimum of 10,000 consumers

over the life of the project and evaluates the impact of those services through follow-up and satisfaction surveys.
9-42 State Technology Assistance Projects

State Technology Assistance Projects

New Hampshire

New Hampshire Technology Partnership Project

University of New Hampshire Technology Partnership

Institute on Disability

The Concord Center

#14 Ten Ferry Street

Concord, NH 03301-5019

mcschuh@cisunix.unh.edu

http://www.iod.unh.edu/projects/assist.htm

Principal Investigator: Jan Nisbet, PhD; Terese Wilkomm, PhD, 603/862-4320 (V/TTY)

Public Contact: 800/427-3338 (V/TTY, in state only); 603/224-0630 (V/TTY); Fax: 603/226-0389

Project Number: H224A10015

Start Date: September 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $506,307; FY 92 $505,008; FY 93 $550,008; FY 94 $635,000;

FY 95 $635,000; FY 96 $587,813; FY 97 $625,813; FY 98 $717,815; FY 99 $538,361;

FY 00 $358,908

Abstract: This project provides extensive training and network development focused on: (1) early

intervention, (2) inclusive education, (3) supported living and employment, and (4) using alternative

and augmentative communication to develop free expression and citizenship. Recycled equipment,

demonstration and training, and information and referral are also available. The project’s lead agency

is the Institute on Disability, a University Affiliated Program at the University of New Hampshire.

Additional subcontracts have been awarded to Granite State Independent Living, Disabilities Rights

Center, and New Hampshire Alliance for Assistive Technology.
State Technology Assistance Projects 9-43

State Technology Assistance Projects

New Jersey

New Jersey Technology Assistive Resource Program (TARP)

New Jersey Protection and Advocacy, Inc.

210 South Broad Street, Third Floor

Trenton, NJ 08608

gblue@njpanda.org

http://www.njpanda.org/tarp

Principal Investigator: Ellen Lence, Project Director

Public Contact: 800/342-5832 (V, in state only); 609/633-7106 (TTY); 609/777-0945; Fax: 609/

341-3327

Project Number: H224A20007

Start Date: September 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $548,050; FY 93 $670,528 (includes carryover funding); FY 94 $548,050;

FY 95 $550,000; FY 96 $509,130; FY 97 $547,130; FY 98 $710,380; FY 99 $688,800;

FY 00 $516,714

Abstract: TARP is a consumer-driven program whose mission is to increase awareness of and

improve access to assistive technology for all people with disabilities in the state. The project provides information and referral through its 800 telephone number and Web site regarding all aspects

of assistive technology. TARP also provides advocacy services, both legal and nonlegal, addressing

both individual and systems issues. In addition, project staff members provide training and technical

assistance, as well as outreach regarding the benefits of and funding for assistive technology devices

and services. TARP disseminates brochures, funding guides, and informational bulletins.
9-44 State Technology Assistance Projects

State Technology Assistance Projects

New Mexico

New Mexico Technology Assistance Program (NMTAP)

New Mexico State Department of Education

Division of Vocational Rehabilitation

435 Saint Michaels Drive, Building D

Santa Fe, NM 87505

aklaus@state.nm.us

http://www.nmtap.com

Principal Investigator: Alan Klaus, Project Director

Public Contact: Caroll Cadena, 800/866-2253 (V/TTY); 800/659-4915 (TTY); 505/954-8533 (V/

TTY); Fax: 505/954-8562

Project Number: H224A00017

Start Date: April 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $500,500; FY 91 $515,500; FY 92 $525,000; FY 93 $660,710;

FY 94 $750,000; FY 95 $750,000; FY 96 $694,000; FY 97 $732,268; FY 98 $549,201;

FY 99 $366,134; FY 00 $336,134

Abstract: NMTAP examines and works to eliminate barriers to obtaining assistive technology in

New Mexico. The project has established a statewide program for coordinating assistive technology

services; the program is designed to assist people with disabilities to locate, secure, and maintain

assistive technology that can increase, maintain, or improve functional capabilities of people with

disabilities. This program is a resource both for people requiring assistive technology and those that

manufacture and provide assistive technology devices or services. The program focuses on permanently eliminating barriers in three major areas: access to, availability of, and funding for assistive

technology.
State Technology Assistance Projects 9-45

State Technology Assistance Projects

New York

New York State Technology-Related Assistance of Individuals with

Disabilities (TRAID) Project

New York State Office of Advocate for Persons with Disabilities

One Empire State Plaza, Suite 1001

Albany, NY 12223-1150

traid@emi.com

http://www.advoc4disabled.state.ny.us/TRAID_Project/technlog.htm

Principal Investigator: Lisa Rosano-Kazckowski, Acting Project Manager

Public Contact: 800/522-4369 (V/TTY/Spanish, in state only); 518/474-2825 (V); 518/473-4231

(TTY); Fax: 518/473-6005

Project Number: H224A00041

Start Date: October 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $500,000; FY 91 $600,000; FY 92 $615,000; FY 93 $820,961;

FY 94 $950,000; FY 95 $950,000; FY 96 $879,406; FY 97 $917,406; FY 98 $688,054;

FY 99 $458,703; FY 00 $458,703

Abstract: The Technology-Related Assistance of Individuals with Disabilities (TRAID) Project has

been established to improve access to assistive technology through consumer-responsive interventions to effect systemic change on a policy, regulatory, and legislative level. Project staff members

chair and facilitate the workings of the NYS Interagency Partnership on Assistive Technology, a

group designed to collaborate with a consumer-majority advisory board to identify systemic barriers

to assistive technology devices and services and collaborate on strategies to address the barriers. In

collaboration with the NYS Department of Health, Early Intervention Program, and Verizon, the

local telecommunications corporation, the TRAID Project administers 12 Regional TRAID Centers

that operate device demonstration and loan services, coordinate local information and referral, and

support individualized self-advocacy. The TRAID Project also provides information and referral

regarding assistive technology, provides training and public awareness, and administers the TRAIDIN Equipment Exchange service.
9-46 State Technology Assistance Projects

State Technology Assistance Projects

North Carolina

North Carolina Assistive Technology Project

North Carolina Department of Health and Human Services

Division of Vocational Rehabilitation Services

1110 Navaho Drive, Suite 101

Raleigh, NC 27609-7322

ncatp@mindspring.com

http://www.mindspring.com/~ncatp

Principal Investigator: Ricki Cook, Project Director

Public Contact: 919/850-2787 (V/TTY); Fax: 919/850-2792

Project Number: H224A00010

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $566,425; FY 91 $595,441; FY 92 $625,843; FY 93 $730,152;

FY 94 $820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $797,066; FY 98 $597,800;

FY 99 $398,533; FY 00 $398,533

Abstract: This project provides information and referral services, technical assistance, and training

seminars and materials. It supports four regional demonstration centers that provide demonstration

and trial of devices. The project’s central office in Raleigh coordinates systems change and advocacy, policy, and funding issues statewide. The North Carolina Division of Vocational Rehabilitation

Services provides the project with internal management systems, agency resources, and fiscal management.
State Technology Assistance Projects 9-47

State Technology Assistance Projects

North Dakota

North Dakota Interagency Program for Assistive Technology (IPAT)

North Dakota Department of Human Services

Office of Vocational Rehabilitation

P.O. Box 743

Cavalier, ND 58220

lee@pioneer.state.nd.us

http://www.ndipat.org

Principal Investigator: Judith A. Lee, Project Director

Public Contact: 800/265-4728 (V/TTY); 701/265-4807 (V/TTY); Fax: 701/265-3150

Project Number: H224A30003

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 93 $500,000; FY 94 $540,000; FY 95 $540,000; FY 96 $509,130;

FY 97 $547,130; FY 98 $633,103; FY 99 $611,000; FY 00 $611,000

Abstract: The Interagency Program for Assistive Technology is dedicated to supporting the assistive

technology (AT) needs of all people with disabilities in North Dakota, including those individuals

experiencing the effects of aging. The vision of this project is increased access to assistive technology devices and services for the citizens of North Dakota. This goal is realized through: (1) interagency coordination that develops and promotes policies that improve access to assistive technology

devices and services for individuals with disabilities of all ages; (2) a public awareness program

designed to provide information to targeted individuals relating to the availability and benefits of

assistive technology devices and services; (3) technical assistance and training that provides support

to public and private entities to increase consumer access to appropriate assessments, training,

equipment, and funding for assistive technology; and (4) outreach activities to all regions of this

rural and sparsely populated state, including a focus on Native Americans and older individuals

living below the poverty level, the two population groups identified as underrepresented in North

Dakota.
9-48 State Technology Assistance Projects

State Technology Assistance Projects

Northern Mariana Islands

Commonwealth of the Northern Mariana Islands (CNMI) Assistive

Technology Project - System of Technology-Related Assistance for

Individuals with Disabilities (STRAID)

CNMI Governor’s Developmental Disabilities Council

Capitol Hill

P.O. Box 502565

Saipan, MP 96950-2565

clamkin@cnmiddcouncil.org; straid@cnmiddcouncil.org

http://www.cnmiddcouncil.org/atstraid/atflash.htm

Principal Investigator: Thomas J. Camacho, Project Director

Public Contact: Celia B. Lamkin, MD, Project Coordinator, 670/664-7000 (V); Fax: 670/664-7010

Project Number: H224A40007

Start Date: October 1, 1994

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 94 $150,000; FY 95 $150,000; FY 96 $150,000; FY 97 $150,000;

FY 98 $150,000; FY 99 $105,000; FY 00 $105,000

Abstract: This project provides technology-related assistance for people with disabilities in the

Commonwealth of the Northern Mariana Islands. The project focuses on the development of a

locally based system for the technology-related needs of children, youth, and adults with disabilities.

The primary objective of this project is to enhance opportunities for people with disabilities in the

Commonwealth to become independent, productive, integrated, and fully included in the community.

Through increased emphasis on coordination with agencies or organizations that provide or pay for

the provision of assistive technology devices or services, the Developmental Disabilities Council is

building and activating a system that responds to people with disabilities’ needs to: (1) have greater

control over their lives; (2) participate in, and contribute more fully to, activities in their home,

school, work environments, and in the community; (3) interact to a greater extent with individuals

who do not have disabilities; and (4) benefit from opportunities that are taken for granted by individuals who do not have disabilities.
State Technology Assistance Projects 9-49

State Technology Assistance Projects

Ohio

Assistive Technology of Ohio (AT-OHIO)

Ohio State University Research Foundation

J.L. Camera Center

2050 Kenny Road, 9th Floor

Columbus, OH 43221

huntt.1@osu.edu

http://atohio.org

Principal Investigator: Sheldon R. Simon, MD

Public Contact: Douglas Huntt, Executive Director, 800/784-3425 (V/TTY, in state only); 614/292-

2426 (V/TTY); 614/292-3162 (TTY); Fax: 614/292-5866

Project Number: H224A40001

Start Date: August 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $522,100; FY 93 $522,000; FY 94 $770,113; FY 95 $600,000;

FY 96 $555,414; FY 97 $593,414; FY 98 $815,688; FY 99 $794,260; FY 00 $595,695

Abstract: This project represents consumers of assistive technology in Ohio. It assists in the development and implementation of strategies to overcome barriers regarding access to, provision of, and

funding for, assistive technology services and devices, with priority for identification of barriers to

funding through state education (including special education), vocational rehabilitation services,

medical assistance services, and, as appropriate, other health and human services, with particular

emphasis on overcoming barriers for underrepresented and rural populations.
9-50 State Technology Assistance Projects

State Technology Assistance Projects

Oklahoma

Oklahoma ABLE Tech

Oklahoma State University

University Wellness Center

1514 West Hall of Fame Road

Stillwater, OK 74078-2026

mljwell@okstate.edu

http://okabletech.okstate.edu

Principal Investigator: Mac McCrory, Project Director

Public Contact: Linda Jaco, Project Manager, 800/257-1705 (V/TTY); 405/744-9864 (V); Fax: 405/

744-2487

Project Number: H224A50007

Start Date: July 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $530,000; FY 93 $668,524 (includes carryover funding); FY 94 $530,000;

FY 95 $575,000; FY 96 $532,272; FY 97 $570,272; FY 98 $695,237; FY 99 $673,809;

FY 00 $505,357

Other funding: FY 00 $33,000 (Southwest Center for Agricultural Health, Injury Prevention and

Education-NIOSH)

Abstract: The mission of ABLE Tech is to facilitate systems change to enhance the provision of,

access to, and funding for assistive technology so that individuals with disabilities can achieve their

greatest potential. ABLE Tech conducts statewide project activities, including public awareness,

training and technical assistance, funding and policy development, individual and systems advocacy,

and project coordination. The project also provides regional information and referral, and legal

advocacy.
State Technology Assistance Projects 9-51

State Technology Assistance Projects

Oregon

Oregon Technology Access for Life Needs (TALN)

Oregon Disabilities Commission

c/o Access Technologies, Inc.

3070 Lancaster Drive Northeast

Salem, OR 97305-1396

ati@orednet.org

http://www.taln.ncn.com

Principal Investigator: Byron McNaught, Project Director

Public Contact: 800/677-7512 (V/TTY, in state only); 503/361-1201 (V/TTY); Fax: 503/370-4530

Project Number: H224A50002

Start Date: April 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $540,000; FY 91 $555,000; FY 92 $575,000; FY 93 $620,000;

FY 94 $670,000; FY 95 $670,000; FY 96 $620,212; FY 97 $658,212; FY 98 $493,659;

FY 99 $329,106; FY 00 $329,106

Abstract: This project uses existing resources including community colleges, medical, rehabilitation, educational, and recreational and adaptive sports programs, the state library system, federally

funded technology projects currently in existence in Oregon, and state agencies to expand the availability of assistive technology in Oregon. Projects include an exhibit to increase public awareness, a

toll-free number for information and referral, training programs, equipment loan banks and demonstration labs, and a database on used equipment.
9-52 State Technology Assistance Projects

State Technology Assistance Projects

Pennsylvania

Pennsylvania’s Initiative on Assistive Technology (PIAT)

Temple University

Institute on Disabilities/UAP

1301 Cecil B. Moore Avenue, 423 Ritter Annex

Philadelphia, PA 19122

piat@astro.ocis.temple.edu

http://www.temple.edu/inst_disabilities/PIAT

Principal Investigator: Diane Bryen, PhD; Amy S. Goldman

Public Contact: Amy S. Goldman, 800/204-7428 (V); 800/750-7428 (TTY); 215/204-5966 (V);

215/204-1356 (V/TTY); Fax: 215/204-9371

Project Number: H224A20006

Start Date: September 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $550,000; FY 93 $602,623; FY 94 $730,000; FY 95 $850,000;

FY 96 $786,837; FY 97 $824,837; FY 98 $1,049,575; FY 99 $1,028,147; FY 00 $771,110

Abstract: This project focuses on the creation of a consumer responsive system, supported by

combined public and private resources, through which Pennsylvanians with disabilities (including

older Pennsylvanians) have access to the assistive technology services and supports they need to

contribute to and participate fully in their communities. Major functional areas include public awareness, information and referral, individual advocacy and systems change, and training. PIAT has

established a network of regional Assistive Technology Resource Centers (ATRCs). ATRCs are also

a key to Pennsylvania’s Assistive Technology Lending Library, a state funded program based on the

pilot short-term equipment loan program developed by PIAT. The Pennsylvania Assistive Technology Foundation (PATF) was established with the assistance of PIAT, and has made cash loans for the

purchase of assistive technology beginning in the Fall of 1998, as an independent 501(c) (3).
State Technology Assistance Projects 9-53

State Technology Assistance Projects

Puerto Rico

Puerto Rico Assistive Technology Project

University of Puerto Rico

Medical Sciences Campus

College of Health Related Professions

Office of Project Research and Development

Box 365067

San Juan, PR 00936-5067

pratp@pratp.org

http://www.pratp.org

Principal Investigator: Maria I. Miranda

Public Contact: 800/496-6035 (V/TTY, from the U.S.); 800/981-6033 (V/TTY, from Puerto Rico);

787/758-2525, ext. 4413; 787/754-8034 (TTY); Fax: 787/754-8034

Project Number: H224A70001

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $500,000; FY 94 $545,000; FY 95 $555,000; FY 96 $513,758;

FY 97 $551,758; FY 98 $692,202; FY 99 $670,774; FY 00 $670,774

Abstract: This project establishes a comprehensive island-wide system of AT services to maximize

and enhance existing resources in Puerto Rico. This system is timely and consumer-responsive to the

needs of people with disabilities. The project’s main focus is to influence the system through collaborative efforts with public and private agencies to guarantee equal opportunity and access to

assistive technology by people with disabilities in Puerto Rico. The Assistive Technology Program is

administered by the University of Puerto Rico, Medical Sciences Campus, Office of Research and

Development.
9-54 State Technology Assistance Projects

State Technology Assistance Projects

Rhode Island

Rhode Island Assistive Technology Access Partnership (ATAP)

Rhode Island Department of Human Services

Office of Rehabilitation Services

40 Fountain Street

Providence, RI 02903-1898

reginac@ors.state.ri.us

http://www.atap.state.ri.us

Principal Investigator: Raymond A. Carroll, Administrator

Public Contact: Regina Connor, Project Director, 800/752-8088 (in state only); 401/421-7005, ext.

390 (V); 401/421-7016 (TTY); Fax: 401/421-9259

Project Number: H224A30012

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 93 $500,000; FY 94 $500,000; FY 95 $500,000; FY 96 $500,000;

FY 97 $538,000; FY 98 $624,467; FY 99 $603,039; FY 00 $603,039

Abstract: The Rhode Island Assistive Technology Access Partnership (ATAP) is a statewide partnership of organizations, each with a targeted focus, working together with a consumer council (Rhode

Island Council on Assistive Technology) to remove barriers and increase access to assistive technology for individuals with disabilities of all ages.
State Technology Assistance Projects 9-55

State Technology Assistance Projects

South Carolina

South Carolina Assistive Technology Program (SCATP)

University of South Carolina School of Medicine

Center for Disability Resources

Columbia, SC 29208

jjendron@usit.net; evelyne@cdd.sc.edu

http://www.public.usit.net/jjendron

Principal Investigator: Richard Ferrante, 803/935-5231 (V)

Public Contact: Evelyn Evans, Project Director, 803/935-5263 (V/TTY); Fax: 803/935-5342

Project Number: H224A60001

Start Date: October 1, 1991

NIDRR Officer: Judith Fein

NIDRR Funding: FY 91 $541,767; FY 92 $541,767; FY 93 $595,767; FY 94 $720,000;

FY 95 $720,000; FY 96 $667,000; FY 97 $704,497; FY 98 $829,535; FY 99 $622,151;

FY 00 $414,768

Abstract: This project is the catalyst for uniting assistive technology services statewide into an

easily accessible system that is responsive to the needs of all South Carolinians with disabilities.

SCATP collaborates with state agencies, policy-makers, and private entities to overcome barriers that

prevent people from getting the devices and services they need for full and productive lives. Systems

change activities are developed with three audiences under consideration: state agency administrators, service providers, and consumers. Rather than direct provision of services, SCATP focuses on

strengthening systems so that they are mutually reinforcing and self-sustaining; the major funding

streams of the Vocational Rehabilitation Department, Medicaid, the Department of Education, and

private insurance are targeted. Systems change activities are connected to training and technical

assistance activities that are supportive of systems change. All activities are guided by input from

and responsiveness to consumers and their families.
9-56 State Technology Assistance Projects

State Technology Assistance Projects

South Dakota

South Dakota Assistive Technology Project (DakotaLink)

DakotaLink

221 South Central

Pierre, SD 57501

dvogel@tie.net

http://dakotalink.tie.net

Principal Investigator: Grady Kickul, 605/773-3195 (V)

Public Contact: Dave Vogel, 800/224-5336 (V/TTY, in state only); 605/224-5336 (V/TTY); Fax:

605/224-8320

Project Number: H224A20019

Start Date: July 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $520,000; FY 93 $520,000; FY 94 $620,000; FY 95 $650,000;

FY 96 $601,699; FY 97 $601,699; FY 98 $728,100; FY 99 $700,000; FY 00 $525,000

Abstract: To achieve systems change, DakotaLink works with consumers, state and private agencies, and organizations providing services to, or advocating for, people with disabilities to identify

and eliminate barriers to individuals receiving assistive technology devices or services in a timely

manner. The project uses a mobile unit, outreach coordinators, rehabilitation technicians, and training programs as a catalyst to: (1) reach the most underserved areas; (2) provide advocacy training for

people with disabilities and their representatives; and (3) provide information support to all individuals regarding access to, provision of, and funding for assistive technology devices and services.

DakotaLink continues to use a Native American Outreach Coordinator to reach specifically that

underserved population.
State Technology Assistance Projects 9-57

State Technology Assistance Projects

Tennessee

Tennessee Technology Access Project (TTAP)

TTAP

Cordell Hull Building, 5th Floor

425 5th Avenue North

Nashville, TN 37243

kwright@mail.state.tn.us

http://www.state.tn.us/mental/ttap.html

Principal Investigator: Kevin R. Wright, Project Director

Public Contact: 615/532-3122 (V); 615/741-4566 (TTY); 800/732-5059; Fax: 615/532-4685

Project Number: H224A00003

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $550,000; FY 91 $553,675; FY 92 $553,675; FY 93 $640,800;

FY 94 $665,000; FY 95 $665,000; FY 96 $615,584; FY 97 $653,584; FY 98 $490,188;

FY 99 $326,792; FY 00 $326,792

Abstract: The Tennessee project emphasizes the implementation and pursuit of systems change and

advocacy activities by developing an information/communication network, working with state

agency policy values, and developing alternate funding mechanisms. The administrative/organizational structure involves consumers, and facilitates interagency cooperation and interaction with the

private sector.
9-58 State Technology Assistance Projects

State Technology Assistance Projects

Texas

Texas Assistive Technology Partnership

University of Texas at Austin

Texas University Affiliated Program

SZB 252 - D5100

Austin, TX 78712-1290

s.elrod@mail.utexas.edu

http://tatp.edb.utexas.edu

Principal Investigator: Susanne Elrod, Project Director

Public Contact: John Moore, 800/828-7839 (V/TTY, in state only); 512/471-7621 (V); 512/471-

1844 (TTY); Fax: 512/471-7549

Project Number: H224A20012

Start Date: August 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $550,000; FY 93 $550,000; FY 94 $550,000; FY 95 $850,000;

FY 96 $786,837; FY 97 $824,837; FY 98 $1,167,518; FY 99 $1,146,080; FY 00 $859,566

Abstract: Major components include public policy advocacy and statewide systems change, protection and advocacy services (Advocacy, Inc., a protection and advocacy system), assistive technology

and telecommunications access training, information and referral, and statewide public awareness

activities.
State Technology Assistance Projects 9-59

State Technology Assistance Projects

U.S. Virgin Islands

U.S. Virgin Islands Technology-Related Assistance

for Individuals with Disabilities (TRAID)

University of the Virgin Islands

Virgin Islands University Affiliated Program (VIUAP)

#2 John Brewer Bay

St. Thomas, USVI 00801-0990

yhabtey@uvi.edu; clewis@uvi.edu

http://www.uvi.edu/pub-relations/viuapindx.html

Principal Investigator: Christine Lewis

Public Contact: 340/693-1323; Fax: 340/693-1325

Project Number: H224A50005

Start Date: October 1, 1995

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 95 $150,000; FY 96 $150,000; FY 97 $150,000; FY 98 $150,000;

FY 99 $105,000; FY 00 $150,000

Other funding: FY 95 $6,400

Abstract: The Virgin Islands project disseminates necessary information on assistive technologies

for people with disabilities and provides a venue for device demonstration through the establishment

of two resource centers, on the islands of St. Thomas and St. Croix. The project is also initiating an

assistive technology loan library.
9-60 State Technology Assistance Projects

State Technology Assistance Projects

Utah

Utah Assistive Technology Program (UATP)

Utah State University

Center for Persons with Disabilities

6588 Old Main Hill

Logan, UT 84322-6588

meblair@cc.usu.edu

http://www.uatpat.org

Principal Investigator: Martin E. Blair, Program Director, 435/797-3886

Public Contact: 435/797-3824 (V); 435/797-7089 (TTY); Fax: 435/797-2355

Project Number: H224A90051

Start Date: November 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $505,445; FY 90 $507,720; FY 91 $559,720; FY 92 $696,224;

FY 93 $788,526; FY 94 $800,000; FY 95 $800,000; FY 96 $740,560; FY 97 $555,414;

FY 98 $370,276; FY 99 $370,276; FY 00 $370,276

Abstract: The Utah Assistive Technology Program (UATP) provides expertise, resources, and a

structure to enhance and expand AT services provided by private and public agencies in Utah. This

occurs through monitoring, coordination, information dissemination, empowering individuals, the

identification and removal of barriers, and expanding state resources. Primary components of UTAP

include: (1) the Utah Center for Assistive Technology, a statewide service hub; (2) Assistive Technology Access Centers located in rural independent living centers; (3) outreach to those over the age

of 65 and their service providers; (4) the Utah Assistive Technology Foundation providing lowinterest loans to consumers; (5) the Consumer Council whose primary interest is to identify barriers;

(6) the Management and Implementation Board, made up of state service agency representatives

(usually the director) that take appropriate action to remove barriers; and (7) consumer technical

services provided by the Assistive Technology Development and Fabrication Laboratory at Utah

State University.
State Technology Assistance Projects 9-61

State Technology Assistance Projects

Vermont

Vermont Assistive Technology Project

Vermont Department of Aging and Disabilities

103 South Main Street, Weeks Building

Waterbury, VT 05671-2305

lynnec@dad.state.vt.us

http://www.dad.state.vt.us/atp

Principal Investigator: Lynne Cleveland, Project Director

Public Contact: 800/750-6355 (V/TTY, in state only); 802/241-2620 (V/TTY); Fax: 802/241-2174

Project Number: H224A00023

Start Date: July 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $553,048; FY 91 $560,577; FY 92 $581,417; FY 93 $705,000;

FY 94 $700,000; FY 95 $700,000; FY 96 $647,983; FY 97 $685,983; FY 98 $514,487;

FY 99 $342,991; FY 00 $342,992

Abstract: The Vermont Assistive Technology Project encompasses a state coordinating council for

assistive technology issues; regional centers for demonstration, trial, and technical support with

computer and augmentative communication equipment; and regional seating and positioning centers.

The project affects change in policies and procedures of public and private agencies, and maintains a

used equipment recycling program. It supports an annual computer training institute for educators

and an annual recreation equipment expo. The project continues to expand Web access to AT information and resources, and to integrate AT knowledge and expertise into existing public and private

agencies. The Project also supports a two-year program in Rehabilitation Engineering Technology at

Vermont Technical College.
9-62 State Technology Assistance Projects

State Technology Assistance Projects

Virginia

Virginia Assistive Technology System (VATS)

Virginia Department of Rehabilitative Services

8004 Franklin Farms Drive

Richmond, VA 23288-0300

knorrkh@drs.state.va.us

http://www.vats.org

Principal Investigator: Kenneth Knorr, Project Director

Public Contact: 800/552-5019 (V/TTY); 804/662-9990 (V/TTY); Fax: 804/662-9478

Project Number: H224A00009

Start Date: June 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $550,000; FY 91 $562,500; FY 92 $578,883; FY 93 $685,331;

FY 94 $663,467; FY 95 $745,000; FY 96 $689,639; FY 97 $727,639; FY 98 $545,729;

FY 99 $363,820; FY 00 $363,820

Abstract: The Virginia Assistive Technology System (VATS) provides coordination at three levels:

state policy, through the mechanism of interagency agreements; project management, through the

mechanism of the advisory council; and at the local and regional level, through four assistive technology regional sites. Activities include information and referral services, technical assistance,

training materials and seminars, and creative grant programs and policy development. The project

has produced a textbook, Assistive Technology: A Resource for School, Work, and Community

(Brookes Publishing) and a National Study of Loan Financing Programs.
State Technology Assistance Projects 9-63

State Technology Assistance Projects

Washington

Washington Assistive Technology Alliance (WATA)

University of Washington

Center for Technology and Disability Studies (CTDS)

Box 357920

Seattle, WA 98195-7920

uwat@u.washington.edu

http://wata.org

Principal Investigator: Jeanne Munro, 360/438-8008 (V); 360/438-8644 (TTY)

Public Contact: Debbie Cook, Project Director, 800/841-8345 (V/TTY, in state only); 206/685-4181

(V); 206/616-1396 (TTY); Fax: 206/543-4779

Project Number: H224A30006

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $525,090; FY 94 $580,000; FY 95 $600,000; FY 96 $555,414;

FY 97 $593,414; FY 98 $739,639; FY 99 $700,000; FY 00 $718,211

Abstract: Activities for this project include information, consultation, and training related to selection of technology devices, services, and funding; legal advice and advocacy; policy development;

legislative action; technical consultation and training; publications; and on-line resources. WATA is a

consumer advocacy network that includes the University of Washington Center for Technology and

Disability Studies, the AT Resource Center at Easter Seal Society in Spokane, and the Washington

Protection and Advocacy System. The project is administered by the state Division of Vocational

Rehabilitation with guidance from the Consumer Majority Advisory Board.
9-64 State Technology Assistance Projects

State Technology Assistance Projects

West Virginia

West Virginia Assistive Technology System (WVATS)

University Affiliated Center for Developmental Disabilities

Airport Research and Office Park

955 Hartman Run Road

Morgantown, WV 26505

jstewart@wvu.edu

http://www.wvu.edu/~uacdd/wvats/wvat.htm

Principal Investigator: Janice A. Holland, 304/766-4694 (V)

Public Contact: Jack Stewart, Project Manager, 800/841-8436 (V/TTY, in state only); 304/293-4692

(V/TTY); Fax: 304/293-7294

Project Number: H224A20011

Start Date: July 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $530,000; FY 93 $530,000; FY 94 $620,000; FY 95 $620,000;

FY 96 $573,928; FY 97 $611,928; FY 98 $716,068; FY 99 $716,068; FY 00 $520,980

Abstract: The WVATS project seeks to improve the availability of assistive technology (AT) by

improving existing AT services, facilitating coordination of AT service-delivery programs, identifying and remediating gaps in services, and promoting, developing, and/or delivering new services.

These systemic changes are carried out in response to and consonant with consumer advice, direction, and consent. The West Virginia project has a board composed primarily of consumers and their

families. State organizations and agencies provide guidance, structure, and input. WVATS uses a

“core” system directed by a board, overseen by the Division of Rehabilitation Services, and managed

on a day-to-day basis by the West Virginia University Affiliated Center for Developmental Disabilities. WVATS supports program staff, an information and referral system with a toll-free number, two

resource centers, a statewide awareness campaign, training programs, and seven regional technology-related assistance teams.
State Technology Assistance Projects 9-65

State Technology Assistance Projects

Wisconsin

WisTech

Wisconsin Assistive Technology Program

Division of Supportive Living

1 West Wilson Street, Room 450

P.O. Box 7851

Madison, WI 53707-7851

hillbl@dhfs.state.wi.us

http://www.dhfs.state.wi.us/Aging/wistech/wistech.htm

Principal Investigator: Barbara Hill, Project Director

Public Contact: 608/266-1794 (V/TTY); 608/267-9880 (TTY); Fax: 608/267-3203

Project Number: H224A00013

Start Date: May 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $572,871; FY 91 $575,000; FY 92 $590,313; FY 93 $685,488;

FY 94 $730,000; FY 95 $730,000; FY 96 $675,754; FY 97 $713,754; FY 98 $535,315;

FY 99 $356,877; FY 00 $356,877

Abstract: The Wisconsin initiative focuses on systems change through a combination of state policy

focus, use of the state’s Protection and Advocacy Agency (Wisconsin Coalition for Advocacy), and

the state’s independent living centers (ILCs). The ILCs, in eight regions of the state, provide advocacy for consumers in related assistive technology cases at the local level. Cases of significance or

that require technical assistance are referred to the Protection and Advocacy Agency, or the state

program for advocacy work. WisTech continues to optimize consumer control and involvement by

obtaining direction from its state consumer advisory board, which is made up of 51 percent consumers or parents. WisTech works to obtain additional state money to finance a consumer assistive

technology loan program and to continue to fund the assistive technology loan/try-out programs at

the ILCs.
9-66 State Technology Assistance Projects

State Technology Assistance Projects

Wyoming

Wyoming’s New Options in Technology (WYNOT)

University of Wyoming

Wyoming Institute for Disabilities (WIND)

1465 North Fourth Street, Suite 111

Laramie, WY 82072

wynot.uw@uwyo.edu

http://wind.uwyo.edu/wynot/wynot.htm

Principal Investigator: Keith Miller, 307/766-2762 (V)

Public Contact: Kathy Laurin, 800/861-4312 (V/TTY, in state only); 307/766-2051 (V/TTY); Fax:

307/721-2084

Project Number: H224A60002

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 94 $500,000; FY 95 $500,000; FY 96 $500,000; FY 97 $500,000;

FY 98 $620,502; FY 99 $599,074; FY 00 $599,074

Abstract: Wyoming New Options in Technology (WYNOT) is a project designed to develop and

implement a consumer oriented statewide system of technology-related assistance for people with

disabilities of all ages. The Assistive Technology Advisory Council (ATAC), which consists of

consumers or providers, oversees project goals. Protection and Advocacy (P&A) conducts advocacy

training and provides legal representation for people with disabilities who have been denied access

to assistive technology services or devices. WYNOT provides information and referral services;

operates an equipment loan bank and a demonstration lab; provides financial resource information,

outreach services, and statewide training on assistive technology issues; and disseminates systems

change information.
State Technology Assistance Projects 9-67

Alabama

Reuben Cook, Executive Director

Alabama Disabilities Advocacy Program

University of Alabama

Box 870395

Tuscaloosa, AL 35487-0395

Phone: 800/826-1675; 205/348-4928; 205/348-

9484 (TTY)

Fax: 205/348-3909

rcook@law.ua.edu

Web site: http://www.adap.net

Alaska

Dave Fleurant, Acting Executive Director

Disability Law Center of Alaska

3330 Arctic Boulevard, Suite 103

Anchorage, AK 99503

Phone: 907/565-1002 (V/TTY); 800/478-1234

Fax: 907/565-1000

E-mail: dfleurant@dlcak.org

Web site: http://www.dlcak.org

American Samoa

Minareta Thompson, Executive Director

Client Assistance Program and

Protection & Advocacy

P. O. Box 3937

Pago Pago, American Samoa 96799

Phone: 011/684/633-2441

Fax: 011/684/633-7286

E-mail: opad@samoatelco.com

Arizona

Leslie Cohen, Executive Director

Arizona Center for Disability Law

100 North Stone Avenue, Suite 305

Tucson, AZ 85701

Phone: 520/327-9547 (V/TTY); 800/922-1447

(V/TTY)

Fax: 520/884-0992

E-mail: lcohen@acdl.com

Web site: http://www.acdl.com

Arkansas

Nan Ellen East, Executive Director

Disability Rights Center, Inc.

Evergreen Place, Suite 201

1100 North University

Little Rock, AR 72207

Phone: 501/296-1775 (V/TTY); 800/482-1174

Fax: 501/296-1779

E-mail: panda@advocacyservices.org or

naneast@hotmail.com

Web site: http://www.advocacyservices.org

California

Catherine Blakemore, Executive Director

Protection & Advocacy, Inc.

100 Howe Avenue, Suite 185N

Sacramento, CA 95825

Phone: 916/488-9955 (Administrative office);

916/488-9950 (Legal office); 800/776-5746

Fax: 916/488-2635 or 916/488-9962

E-mail: cathyb@pai-ca.org or legalmail@paica.org

Web site: http://www.pai-ca.org

Protection and Advocacy for Assistive Technology Directory

Pursuant to Title I, Section 102 of the Assistive Technology Act, each state and outlying area annually receives a grant from NIDRR to support protection and advocacy services through the systems

established to provide protection and advocacy under the Developmental Disabilities Assistance and

Bill of Rights Act, for the purposes of assisting in the acquisition, utilization, or maintenance of

assistive technology devices or services for individuals with disabilities. Each state is awarded

$50,000 annually, and the four outlying areas each receive grants of $20,000 annually. These projects

provide legal advocacy, information, and technical assistance, and work closely with the state grants

projects. A list of the state protection and advocacy agencies and contact information for each is

included below.
9-68 State Technology Assistance Projects

Colorado

Mary Anne Harvey, Executive Director

The Legal Center

455 Sherman Street, Suite 130

Denver, CO 80203

Phone: 303/722-0300 (V/TTY); 800/288-1376

Fax: 303/722-0720

E-mail: maharvey@thelegalcenter.org or

tlcmail@thelegalcenter.org

Web site: http://www.thelegalcenter.org

Connecticut

Jim McGaughey, Executive Director

Office of P&A for Persons with Disabilities

60B Weston Street

Hartford, CT 06120-1551

Phone: 860/297-4300; 860/566-2102 (TTY);

800/842-7303 (statewide)

Fax: 860/566-8714

E-mail: james.mcgaughey@po.state.ct.us

Web site: http://www.state.ct.us/opapd

Delaware

James McGiffin, Executive Director / Brian

Hartman, Administrator

Community Legal Aid Society, Inc.

Community Services Building, Suite 801

100 W. 10th Street

Wilmington, DE 19801

Phone: 302/575-0660 (V/TTY)

Fax: 302/575-0840

E-mail: bjh@diamondnet.org

District of Columbia

Jane Brown, Executive Director

University Legal Services

300 I Street, NE, Suite 202

Washington, DC 20002

Phone: 202/547-0198

Fax: 202/547-2083

Email: jbrown@uls-dc.com

Florida

Gary Blumenthal, Executive Director

Advocacy Ctr. for Persons w/Disabilities

2671 Executive Center, Circle West

Webster Building, Suite 100

Tallahassee, FL 32301-5024

Phone: 850/488-9071; 800/342-0823; 800/346-

4127 (TTY)

Fax: 850/488-8640

E-mail: g.blumenthal@advocacycenter.org

Web site: http://www.advocacycenter.org

Georgia

Joyce Ringer

Georgia Advocacy Office, Inc.

100 Crescent Centre Parkway, Suite 520

Tucker, GA 30084

Phone: 404/885-1234 (V/TTY); 800/537-2329

Fax: 770/414-2948

E-mail: ringer@thegao.org or info@thegao.org

Web site: http://ul451.gsu.edu/gao

Guam

Daniel Somerfleck, Executive Director

Guam Legal Services

113 Bradley Place

Hagatna, Guam 69610

Phone: 671/477-9811

Fax: 671/477-1320

E-mail: glsc@netpci.com

Hawaii

Gary Smith, Executive Director

Hawaii Disability Rights Center

1580 Makaloa Street, Suite 1060

Honolulu, HI 96814

Phone: 808/949-2922 (V/TTY)

Fax: 808/949-2928

E-mail: gls@pixi.com or pahi@pixi.com

Web site: http://www.pixi.com/~pahi

Idaho

Jim Baugh, Executive Director

Co-Ad, Inc.

4477 Emerald, Suite B-100

Boise, ID 83706

Phone: 208/336-5353 (V/TTY); 800/632-5125

Fax: 208/336-5396

E-mail: coadinc@uswest.net or

jrbaugh@uswest.net

Web site: http://users.moscow.com/co-ad
State Technology Assistance Projects 9-69

Illinois

Zena Naiditch, Executive Director

Equip for Equality, Inc.

11 East Adams, Suite 1200

Chicago, IL 60603

Phone: 312/341-0022 (V/TTY); 800/537-2632

Fax: 312/341-0295

E-mail: zena@equipforequality.org

Web site: http://www.equipforequality.org

Indiana

Tom Gallagher, Executive Director

Indiana Protection and Advocacy Services

4701 N. Keystone Ave., Suite 222

Indianapolis, IN 46204

Phone: 317/722-5555 (V/TTY); 800/622-4845

Fax: 317/722-5564

E-mail: tgallagher@ipas.state.in.us

Iowa

Sylvia Piper, Executive Director

Iowa P&A Service, Inc.

3015 Merle Hay Road, Suite 6

Des Moines, IA 50310

Phone: 515/278-2502; 515/278-0571 (TTY);

800/779-2502

Fax: 515/278-0539

E-mail: spiper@ipna.org or info@ipna.org

Kansas

Jim Germer, Executive Director

Kansas Advocacy & Protection Services

3745 SW Wanamaker Road

Topeka, KS 66610

Phone: 785/273-9661

Fax: 785/273-9414

E-mail: jim@ksadv.org

Kentucky

Maureen Fitzgerald, Executive Director

Office for Public Advocacy

Division for P&A

100 Fair Oaks Lane, 3rd Floor

Frankfort, KY 40601

Phone: 502/564-2967; 800/372-2988 (TTY)

Fax: 502/564-0848

E-mail: mfitzgerald@mail.pa.state.ky.us

Louisiana

Lois Simpson, Executive Director

Advocacy Center

225 Baronne, Suite 2112

New Orleans, LA 70112-2112

Phone: 504/522-2337 (V/TTY); 800/960-7705

Fax: 504/522-5507

E-mail: Simplo@advocacyLA.org

Maine

Kim Moody, Executive Director

Disability Rights Center

24 Stone Street

P.O. Box 2007

Augusta, ME 04338

Phone: 207/626-2774; 800/452-1948 (TTY)

Fax: 207/621-1419

E-mail: advocate@drcme.org or

kmoody@drcme.org

Maryland

Phillip Fornaci, Executive Director

Maryland Disability Law Center

Central Maryland Office

The Walbert Building, Suite 204

1800 North Charles Street

Baltimore, MD 21201

Phone: 410/234-2791; 410/727-6387 (V/TTY);

800/233-7201

Fax: 410/234-2624 or 410/727-6389

E-mail: philf@mdlcbalto.org

Massachusetts

PADD/PAIR

Christine Griffin, Executive Director

Disability Law Center, Inc.

11 Beacon Street, Suite 925

Boston, MA 02108

Phone: 617/723-8455 (V/TTY)

Fax: 617/723-9125

E-mail: cgriffin@dlc-ma.org

Web site: http://www.dlc-ma.org

PAIMI

Bob Fleischner

Center for Public Representation

22 Green Street
9-70 State Technology Assistance Projects

Northampton, MA 01060

Phone: 413/586-6024 (V/TTY)

Fax: 413/586-5711

E-mail: rfleischner@gbls.org

Michigan

Elizabeth Bauer, Executive Director

Michigan P&A Services

106 West Allegan, Suite 300

Lansing, MI 48933

Phone: 517/487-1755 (V/TTY)

Fax: 517/487-0827

E-mail: ebauer@mpas.org

Web site: http://www.mpas.org

Minnesota

Lisa Cohen, Administrator

Minnesota Disability Law Center

430 First Avenue North, Suite 300

Minneapolis, MN 55401-1780

Phone: 612/332-1441; 800/292-4150

Fax: 612/334-5755

E-mail: lcohen@midmnlegal.org

Mississippi

Rebecca Floyd, Executive Director

Mississippi P&A System for DD, Inc.

5305 Executive Place, Suite A

Jackson, MS 39206

Phone: 601/981-8207 (V/TTY)

Fax: 601/981-8313

E-mail: mspna@bellsouth.net

Missouri

Shawn DeLoyola, Executive Director

Missouri P&A Services

925 S. Country Club Drive, Unit B-1

Jefferson City, MO 65109

Phone: 573/893-3333; 800/392-8667

Fax: 573/893-4231

E-mail: mopasjc@socket.net

Web site: http://www.members.socket.net/

~mopasjc/MOP&A.htm

Montana

Bernadette Franks-Ongoy, Executive Director

Montana Advocacy Program

400 North Park, 2nd Floor

PO Box 1681

Helena, MT 59624

Phone: 406/449-2344 (V/TTY); 800/245-4743

Fax: 406/449-2418

E-mail: bernie@mtadv.org

Web site: http://www.mt.net/~advocate

Native American

PADD

Therese Yanan, Executive Director

DNA-People’s Legal Services, Inc.

P.O. Box 392

Shiprock, NM 87240

Phone: 505/368-3216

Fax: 505/368-3220

E-mail: napap@cyberport.com or

tyanan@cyberport.com

Nebraska

Timothy Shaw, Executive Director

Nebraska Advocacy Services, Inc.

522 Lincoln Center Building

215 Centennial Mall South

Lincoln, NE 68508

Phone: 402/474-3183 (V/TTY)

Fax: 402/474-3274

E-mail: Tim@nas-pa.org

Nevada

Jack Mayes, Executive Director

Nevada Advocacy & Law Center, Inc.

6039 Eldora Avenue, Suite C-3

Las Vegas, NV 89146

Phone: 702/257-8150; 702/257-8160 (TTY);

888/349-3843

Fax: 702/257-8170

E-mail: ndalc@earthlink.net (Las Vegas office);

JMayes9524@aol.com or reno@ndalc.org (Reno

office)

Web site: http://www.ndalc.org

New Hampshire

Donna Woodfin, Executive Director

Disabilities Rights Center

P. O. Box 3660

18 Low Avenue
State Technology Assistance Projects 9-71

Concord, NH 03302-3660

Phone: 603/228-0432 (V/TTY)

Fax: 603/225-2077

E-mail: donnaw@drcnh.org

New Jersey

Sarah Wiggins-Mitchell, Executive Director

New Jersey P&A, Inc.

210 S. Broad Street, 3rd Floor

Trenton, NJ 08608

Phone: 609/292-9742; 800/922-7233

Fax: 609/777-0187

E-mail: advoca@njpanda.org or

smitch@njpanda.org

Web site: http://www.njpanda.org

New Mexico

James Jackson, Executive Director

Protection & Advocacy, Inc

1720 Louisiana Boulevard, NE, Suite 204

Albuquerque, NM 87110

Phone: 505/256-3100 (V/TTY); 800/432-4682

Fax: 505/256-3184

E-mail: nmpajackson@hotmail.com

Web site: http://www.nmprotectionadvocacy.com

New York

Gary O’Brien, Executive Director

NYS Commission on Quality of Care

for the Mentally Disabled

401 State Street

Schenectady, NY 12305-2397

Phone: 518/381-7098; 800/624-4143 (TTY)

Fax: 518/381-7095

E-mail: cqc.state.ny.us or garyo@cqc.state.ny.us

Web site: http://www.cqc.state.ny.us

North Carolina

Allen Perry, Executive Director

Governor’s Advocacy Council for

Persons with Disabilities

2113 Cameron Street, Suite 218

Raleigh, NC 27605

Phone: 919/733-9250 (V/TTY); 800/821-6922

Fax: 919/733-9173

Email: allen.perry@ncmail.net

Web site: http://www.doa.state.nc.us/doa/gacpd/

gacpd.htm

North Dakota

Teresa Larsen, Executive Director

North Dakota Protection & Advocacy Project

400 E. Broadway, Suite 616

Bismarck, ND 58501

Phone: 701/328-2950; 800/472-2670; 800/642-

6694 (24-hour line); 800/366-6888 (TTY)

Fax: 701/328-3934

E-mail: tlarsen@state.nd.us

Northern Mariana Islands

Lydia Santos, Executive Director

Northern Marianas

Protection and Advocacy System, Inc.

P.O. Box 503529

Saipan, MP 96950-3529

Phone: 670/235-7274; 670/235-7273

Fax: 670/235-7275

E-mail: nmpasi@gtepacifica.net

Ohio

Carolyn Knight, Executive Director

Ohio Legal Rights Service

8 East Long Street, 5th Floor

Columbus, OH 43215

Phone: 614/466-7264 (V/TTY); 800/282-9181

Fax: 614/644-1888

E-mail: cknight@mail.olrs.ohio.gov

Web site: http://www.state.oh.us/olrs

Oklahoma

Kayla Bower, Executive Director

Oklahoma Disability Law Center, Inc.

2915 Classen Boulevard, Suite 300

Oklahoma City, OK 73106

Phone: 405/525-7755; 800/880-7755

Fax: 405/525-7759

E-mail: odlcokc@flash.net or

kbower1@flash.net

Web site: http://www.flash.net/~odlcokc
9-72 State Technology Assistance Projects

Oregon

Robert Joondeph, Executive Director

Oregon Advocacy Center

620 SW Fifth Ave., 5th Floor

Portland, OR 97204-1428

Phone: 503/243-2081; 800/452-1694; 800/556-

5351 (TTY)

Fax: 503/243-1738

E-mail: bob@oradvocacy.org or

welcome@oradvocacy.org

Web site: http://www.oradvocacy.org

Pennsylvania

Kevin Casey, Executive Director

Pennsylvania P&A, Inc.

1414 N. Cameron Street, Suite C

Harrisburg, PA 17103

Phone: 717/236-8110 (V/TTY); 800/692-7443

Fax: 717/236-0192

E-mail: ppa@ppainc.org

Puerto Rico

David Cruz, Executive Director

Office of the Governor

Ombudsman for the Disabled

P. O. Box 41309

San Juan, PR 00940-1309

Phone: 787/721-4299; 787/725-2333; 800/981-

4125; 787/4014 (TTY)

Fax: 787/721-2455

E-mail: Dcruz@oppi.prstar.net or

mromero@oppi.prstar.net

Web site: http://www.oppi.prstar.net

Rhode Island

Ray Bandusky, Executive Director

Rhode Island Disability Law Center Inc.

349 Eddy Street

Providence, RI 02903

Phone: 401/831-3150; 401/831-5335 (TTY);

800/733-5332

Fax: 401/274-5568

E-mail: hn7384@handsnet.org

South Carolina

Gloria Prevost, Executive Director

Protection & Advocacy for People with Disabilities, Inc.

3710 Landmark Drive, Suite 208

Columbia, SC 29204

Phone: 803/782-0639 (V/TTY); 800/922-5225

Fax: 803/790-1946

E-mail: SCPA@SC-online.net

South Dakota

Robert Kean, Executive Director

South Dakota Advocacy Services

221 South Central Avenue

Pierre, SD 57501

Phone: 605/224-8294 (V/TTY); 800/658-4782

Fax: 605/224-5125

E-mail: keanr@sdadvocacy.com

Web site: http://www.sdadvocacy.com

Tennessee

Shirley Shea, Executive Director

Tennessee P&A, Inc.

P. O. Box 121257

Nashville, TN 37212

Phone: 615/298-1080 (V/TTY); 800/342-1660

Fax: 615/298-2046

E-mail: shirleys@tpainc.org

Texas

Jim Comstock-Galagan, Executive Director

Advocacy, Inc.

7800 Shoal Creek Boulevard, Suite 171-E

Austin, TX 78757

Phone: 512/454-4816 (V/TTY); 800/252-9108

Fax: 512/323-0902

E-mail: jgalagan@advocacyinc.org

Web site: http://www.advocacyinc.org

Utah

Fraser Nelson, Executive Director

Disability Law Center

455 East 400 South, Suite 410

Salt Lake City, UT 84111

Phone: 801/363-1347 (V/TTY); 800/662-9080

Fax: 801/363-1437

E-mail: fnelson@disabilitylawcenter.org

Web site: http://www.disabilitylawcenter.org
State Technology Assistance Projects 9-73

Vermont

Judy Rex, Executive Director

Vermont Protection & Advocacy

15 East State Street, Suite 101

Montpelier, VT 05602

Phone: 802/229-1355; 800/834-7890

Fax: 802/229-1359

E-mail: Jrex@vtpa.org

Virginia

Susan Ferguson, Executive Director

Dept. for Rights of Virginians with Disabilities

Ninth Street Office Building

202 North 9th Street, 9th floor

Richmond, VA 23219

Phone: 804/225-2042 (V/TTY); 800/552-3962

Fax: 804/225-3221

Email: fergusst@drvd.state.va.us

Web site: http://www.cns.state.va.us/drvd

Virgin Islands

Ameila Headley-Lamont, Executive Director

Virgin Islands Advocacy, Inc.

63 Carlton

Frederiksted, VI 00840

Phone: 340/772-1200; 340/772-4641 (TTY)

Fax: 340/772-0609

E-mail: viadvocacy@worldnet.att.net

Washington

Mark Stroh, Executive Director

Washington P&A System

180 West Dayton, Suite 102

Edmonds, WA 98020

Phone: 425/776-1199; 800/562-2702 (V); 800/

905-0209 (TTY)

Fax: 425/776-0601 or 425/776-0533

E-mail: wpas@wpas-rights.org or

mstroh@wpas-rights.org

Web site: http://www.wpas-rights.org

West Virginia

Barbara Bayes, Executive Director

West Virginia Advocates, Inc.

Litton Bldg, 4th Floor

1207 Quarrier Street

Charleston, WV 25301

Phone: 304/346-0847 (V/TTY); 800/950-5250

Fax: 304/346-0867

E-mail: bbayes@wvadvocates.org

Web site: http://www.newwave.net/

~wvadvocates

Wisconsin

Lynn Breedlove, Executive Director

Wisconsin Coalition for Advocacy

16 N. Carroll Street, Suite 400

Madison, WI 53703

Phone: 608/267-0214; 608/267-0214 (TTY)

Fax: 608/267-0368

E-mail: lynnb@w-c-a.org or wcamsn@w-c-a.org

(Madison); wcamke@w-c-a.org (Milwaukee)

Wyoming

Jeanne Thobro, Executive Director

Wyoming P&A System

320 West 25th Street, 2nd Floor

Cheyenne, WY 82001

Phone: 307/638-7668; 307/632-3496; 800/821-

3091 (V/TTY); 800/624-7648

Fax: 307/638-0815

E-mail: wypanda@vcn.com

Web site: http://www.vcn.com/~wypanda

Subject Index

Subject Index A-1

Abuse

alcoholism .................................................. 4-8

brain injuries............................................... 4-8

community integration ............................... 4-8

curriculum ................................................ 4-30

depression ................................................... 4-8

emergent disabilities ................................. 5-10

females.............................................4-30, 5-10

independent living .................................... 4-30

personal assistance services ..................... 4-30

prevention ................................................. 4-30

substance abuse .......................................... 4-8

violence .................................................... 5-10

Accessibility

blindness................................................... 3-18

braille ........................................................ 3-18

computers ................................................. 3-13

health care ................................................ 2-16

information resources ............................... 6-12

information technology ...................3-13, 3-15

Internet................................... 3-13, 6-12, 6-18

media ........................................................ 3-35

policy ........................................................ 2-16

recreation trails ......................................... 6-18

remote service delivery ...................3-14, 3-35

technology ................................................ 3-35

telecommunications.................................. 3-14

tourist attractions .............................6-12, 6-18

travel ......................................................... 6-12

universal design .............................3-13—3-15

Accommodation

ADA Technical Assistance

Programs ......................................... Chapter 7

arthritis...................................................... 2-10

computer applications .............................. 3-51

databases................................................... 3-51

exercise ..................................................... 2-10

health care ................................................ 2-10

participatory action research (PAR) ......... 2-10

rehabilitation medicine ............................. 2-10

work adjustment ....................................... 3-51

ADA

Chapter 7 focuses on the Americans with

Disabilities Act and includes these crossreferences: Accommodation, Business, Compliance, Dissemination, Employment, Implementation, Information referral, Information resources, Needs assessment, Public accommodations, Service delivery, Technical Assistance,

Telecommunications, Training, Transportation,

and Utilization. Other references:

employment .....................................1-14, 1-24

Internet...................................................... 6-13

policy ...............................................1-24, 6-13

Advocacy

Technology assistance programs..... Chapter 9

Protection and Advocacy

Projects.......................................... 9-67—9-73

barriers .................................................5-6, 9-3

databases..................................................... 6-2

empowerment ............................................. 5-6

housing ..................................................... 3-11

information referral .................................. 3-11

international rehabilitation ......................... 6-2

policy .......................................................... 5-6

rehabilitation research .............................. 3-11

research utilization ..................................... 6-2

technology ................................................ 3-11

universal design ........................................ 3-11

Aging

arthritis........................................................ 2-4

cerebral palsy.............................................. 2-4

cognition ................................................... 8-25

databases..................................................... 2-4

down syndrome .......................................... 2-8

employment .............................................. 2-13

ethnic groups ............................................ 2-68

females...................................................... 2-68

geriatric rehabilitation .............................. 8-25

health care ................ 2-3, 2-4, 2-8, 2-13, 2-68

home modification ...................................... 3-6

information resources ................................. 3-6

mental retardation ....................................... 2-8

mobility ...................................................... 3-6

multiple sclerosis ...................................... 2-13

neuromuscular disorders .......................... 2-13

physiology ................................................ 8-25

rehabilitation engineering ........................... 3-6

rehabilitation medicine ......................2-3, 2-13

rehabilitation research .........................2-3, 2-4

research fellowships ................................. 8-25

spinal cord injuries ............................2-3, 2-68

training...................................................... 8-25
A-2 Subject Index

Agriculture .....................................................2-64

Alcoholism ......................................................4-8

Alternative communication ...........................3-31

Alternative medicine .....................................2-84

Ambulation ....................................................3-45

American Indians/Native Americans ..............5-1

Amputations

ambulation ................................................ 3-45

bioengineering .......................................... 3-29

prosthetics.............................. 3-23, 3-29, 3-45

rehabilitation engineering ......................... 3-29

technology ................................................ 3-45

training...................................................... 3-23

Arthritis

aging ........................................................... 2-4

cerebral palsy.............................................. 2-4

children ..................................................... 2-83

databases..................................................... 2-4

exercise ............................................2-10, 2-83

health care .........................................2-4, 2-10

job accommodation .................................. 2-10

participatory action research (PAR) ......... 2-10

rehabilitation medicine ............................. 2-10

rehabilitation research ................................ 2-4

youth ......................................................... 2-83

Assistive technology

Chapter 3 focuses on assistive technology for

access and function. Chapter 9 focuses on the

state technology assistance programs and

includes the following cross-references:

Assistive technology, Advocacy, Consumers,

Funding, Information resources, Information

referral, Interagency cooperation, Needs

assessment, Service delivery, Systems change,

Technology assistance programs, and Training.

Other references:

Protection and Advocacy

Projects.......................................... 9-67—9-73

accessibility ........ 3-15, 3-18, 9-53, 9-63, 9-66

accommodation ........................................ 3-51

aging ........................................................... 3-6

blindness ....................... 3-18, 3-32, 3-33, 3-47

braille ..................................... 3-18, 3-21, 3-32

children ..............................................3-1, 3-19

closed captioning ...................................... 3-33

communication ...................... 3-10, 3-20, 3-61

communication devices ...................3-10, 3-24

computer applications ........... 3-32, 3-49, 3-51

computers ........................................1-30, 3-48

consumers........................................3-42, 6-15

daily living .................................................. 6-6

databases......................... 3-51, 6-6, 6-15, 6-19

deafness ...........................................3-33, 3-39

dissemination ........................... 6-6, 6-14, 6-15

employment .............................................. 1-30

evaluation ........................................3-20, 3-27

hearing impairments ................ 3-9, 3-33, 3-39

home modification ...................................... 3-6

independent living .................................... 8-20

information referral .................................... 6-6

information resources ........................3-6, 6-15

information technology ............................ 3-15

Internet................................... 1-30, 6-15, 6-19

macular degeneration ............................... 3-22

math skills ................................................ 3-58

mobility .............................................3-6, 3-19

mobility impairments ............................... 3-49

neuromuscular disorders .......................... 3-24

orthotics ...................................................... 3-1

outcome .................................................... 8-20

physical disabilities .................................... 3-1

reading skills ............................................ 3-22

rehabilitation engineering .... 3-1, 3-6, 3-7, 3-9,

3-19, 6-14

rehabilitation research ................................ 3-9

remote service delivery ...................3-20, 3-27

research fellowships ................................. 8-20

robotics ..................................................... 3-52

rural services ...................................1-30, 3-20

self employment ....................................... 1-30

speech synthesis ....................................... 3-24

students ..................................................... 3-52

tactile systems .......................................... 3-58

technology development ....... 3-47, 3-48, 3-58

technology transfer ..................................... 3-7

telecommunications.................................. 3-27

training...................................................... 8-20

TTY .......................................................... 3-61

universal design ...............................3-15, 3-42

utilization .................................................. 6-14
Subject Index A-3

visual impairments ............... 3-21, 3-22, 3-32,

3-33, 3-47

vocational rehabilitation ........................... 8-20

work adjustment ....................................... 3-51

Attention deficit disorders .............................4-37

Autoimmune disorders

chronic fatigue syndrome ......................... 4-17

emergent disabilities........................1-22, 4-17

employment .............................................. 1-22

intervention ............................................... 4-17

participatory action research (PAR) ......... 4-17

work transition .......................................... 1-22

Back pain .........................................................8-8

Barriers

advocacy ..............................................5-6, 9-3

employment .............................................. 1-15

empowerment ............................................. 5-6

mental illness ............................................ 1-15

policy .................................................1-15, 5-6

Behavior disorders

children ................................................4-2, 4-9

community integration ......................4-2, 4-16

emotional disorders ................. 1-27, 4-9, 4-16

employment .............................................. 1-27

family life ................................................... 4-9

mental health .............................................. 4-9

parents ...................................................... 4-16

schools ...................................................... 4-16

students ..................................................... 4-16

work transition .......................................... 1-27

youth ..................................................1-27, 4-2

Behavior problems

brain injuries ............................................. 2-18

children ................................................4-2, 4-9

community integration ............................. 4-25

family life ................................................. 4-25

pharmacology ........................................... 2-18

prevention ................................................. 4-25

rehabilitation medicine ............................. 2-18

Behavioral support, 4-29

Bioengineering

amputations .............................................. 3-29

prosthetics................................................. 3-29

rehabilitation engineering ................3-29, 8-18

rehabilitation medicine ............................. 8-18

research fellowships ................................. 8-18

training...................................................... 8-18

Blindness

accessibility .............................................. 3-18

alternative formats.................................... 3-30

braille ...............................................3-18, 3-32

closed captioning ...................................... 3-33

computers ........................................3-30, 3-32

databases................................................... 3-54

employment ................................................ 1-6

Internet...................................................... 3-34

rehabilitation research ................................ 1-6

tactile systems .......................................... 3-54

technology development .................3-47, 3-54

telecommunications.................................. 3-34

television .................................................. 3-34

training materials ...................................... 3-30

visual impairments ...... 1-6, 3-30, 3-32—3-34,

3-47, 3-54

Braille

accessibility .............................................. 3-18

blindness..........................................3-18, 3-32

computer applications .............................. 3-32

visual impairments ..........................3-21, 3-32

Brain injuries

Model TBI Systems ........................ 2-45—2-61

abuse ........................................................... 4-8

alcoholism .................................................. 4-8

behavior problems .................................... 2-18

caregivers.................................................. 4-27

children ..................................................... 4-27

community integration ... 2-12, 2-85, 4-8, 4-21

community living ..................................... 2-56

computer applications .............................. 2-69

consumers................................................. 2-58

depression ................................................... 4-8

driving ...................................................... 3-38

drugs ................................................2-62, 2-63

evaluation techniques ............................... 3-38

exercise ..................................................... 2-76

family life .............................. 2-12, 2-20, 2-85
A-4 Subject Index

financial aid .............................................. 2-53

functional evaluation ................................ 2-50

health care .......................................2-45, 2-78

international rehabilitation ....................... 2-89

Internet...................................................... 2-55

intervention ............................................... 2-12

limb function ............................................ 2-76

memory ............................................2-21, 2-81

mental health ............................................ 2-78

mental stress ............................................. 4-27

outcome .............. 2-45, 2-50, 2-57, 2-58, 2-89

participatory action research (PAR) ......... 8-23

pharmacology ..................................2-18, 2-82

psychosocial factors ........................2-69, 2-85

questionnaires........................................... 2-85

rehabilitation .......................... 2-46, 2-69, 3-28

rehabilitation engineering ......................... 3-28

rehabilitation medicine ......... 2-17, 2-18, 2-20,

2-21, 2-45—2-61, 2-62, 2-63, 2-69, 2-72, 2-81,

2-82, 8-23

rehabilitation research .. 2-50, 2-56, 2-58, 2-59

remote service delivery ......... 2-48, 2-55, 2-78

research..................................................... 2-46

research fellowships ..........................8-7, 8-23

rural services ................ 2-52, 2-53, 2-57, 2-78

service delivery ........................................ 2-46

social skills ............................................... 4-21

spasticity ................................................... 2-76

stroke ...............................................2-69, 3-28

substance abuse .......................................... 4-8

technology ................................................ 3-28

teleconferencing ....................................... 2-78

tests............................................................. 8-7

training...................................................... 8-23

transportation ............................................ 3-38

transportation accessibility ....................... 2-53

veterans....................................................... 8-7

violence .................................................... 2-59

vocational rehabilitation ........................... 2-60

youth ......................................................... 2-72

Burns

Model Burn Injury Systems ........... 2-22—2-26

children .................................. 2-24, 2-25, 4-32

community integration ....................2-26, 4-32

mental health ............................................ 4-32

Business

ADA Technical Assistance

Programs ......................................... Chapter 7

Cancer............................................................8-10

Capacity building

Capacity building for Rehabilitation

Research Training ........................... Chapter 8

Caseload management ...................................1-31

Cerebral palsy

aging ........................................................... 2-4

arthritis........................................................ 2-4

databases..................................................... 2-4

health care .................................................. 2-4

health promotion....................................... 2-11

Internet...................................................... 2-11

long term disabilities ................................ 2-11

rehabilitation research ................................ 2-4

Children

arthritis...................................................... 2-83

behavior disorders ...............................4-2, 4-9

behavior problems .................................... 4-25

brain injuries ............................................. 4-27

burns ...................................... 2-24, 2-25, 4-32

caregivers.................................................. 4-27

community integration .... 2-24, 2-25, 4-2, 4-3,

4-13, 4-14, 4-25

dissemination .............................................. 6-1

early intervention ...................................... 4-14

education .................................................. 4-14

emotional disorders .................................... 4-9

ethnic groups ............................................ 4-13

evaluation techniques ............................... 3-57

exercise ..................................................... 2-83

family life ........................ 2-6, 4-9, 4-13, 4-14,

4-25, 5-3, 6-1

financial aid .............................................. 4-14

functional evaluation ................................ 3-16

health care ......................................... 2-6, 8-11

learning disabilities .................................. 4-28

managed care .............................................. 2-6

mental health ............................. 4-3, 4-9, 4-32

mental stress ............................................. 4-27

mobility ...........................................3-16, 3-19

orthotics ...................................................... 3-1

outcome ...........................................2-24, 2-25

parenting with a disability .......................... 6-1

physical disabilities .................................... 3-1

physical fitness ......................................... 3-57

policy .......................................................... 5-3
Subject Index A-5

powered wheelchairs ................................ 3-16

prevention ................................................. 4-25

rehabilitation ............................................. 2-83

rehabilitation engineering ..................3-1, 3-19

rehabilitation medicine ....................2-24, 2-25

rehabilitation research .............................. 2-25

remote service delivery .............................. 2-6

research fellowships ................................. 8-11

rural services ............................................ 2-24

service delivery ......................... 4-3, 6-1, 8-11

spina bifida ............................................... 4-28

technology ................................................ 3-16

technology development .......................... 3-57

visual impairments ................................... 4-13

youth .......................................... 2-83, 4-2, 5-3

Chronic fatigue syndrome .............................4-17

Clinical management

Model Burn Injury Systems ........... 2-22—2-26

Model SCI Systems ........................ 2-27—2-44

Model TBI Systems ........................ 2-45—2-61

Closed captioning ..........................................3-33

Cognition

adults ........................................................ 4-29

aging ......................................................... 8-25

behavioral support .................................... 4-29

community integration ............................. 4-29

computers ................................................. 3-43

daily living ................................................ 3-43

evaluation ................................................. 2-87

functional evaluation ................................ 4-29

geriatric rehabilitation .............................. 8-25

memory ..................................................... 2-87

multiple sclerosis ...................................... 2-87

physiology ................................................ 8-25

research fellowships ................................. 8-25

technology ................................................ 3-43

training...................................................... 8-25

youth ......................................................... 4-29

Communication

communication devices ............................ 3-10

computer applications .............................. 3-60

deafness .................................................... 3-60

education .................................................. 2-79

evaluation ................................................. 3-20

functional evaluation ................................ 2-74

Internet...................................................... 2-79

physical disabilities .................................. 2-79

reading skills ............................................ 2-79

rehabilitation medicine ............................. 2-74

remote service delivery ............................ 3-20

rural services ............................................ 3-20

sign language ............................................ 3-60

TTY .......................................................... 3-61

youth ......................................................... 2-79

Communication devices

communication ......................................... 3-10

Internet...................................................... 3-44

language.................................................... 3-25

neuromuscular disorders .......................... 3-24

reading skills ............................................ 3-25

remote service delivery ............................ 3-44

rural services ............................................ 3-44

speech synthesis ....................................... 3-24

technology ................................................ 3-44

youth ......................................................... 3-44

Community integration

Independent Living and

Community Integration ................... Chapter 3

Model Burn Injury Systems ........... 2-22—2-26

Model SCI Systems ........................ 2-27—2-44

Model TBI Systems ........................ 2-45—2-61

abuse ........................................................... 4-8

adults ........................................................ 4-29

alcoholism .................................................. 4-8

behavior disorders .............................4-2, 4-16

behavior problems .................................... 4-25

behavioral support .................................... 4-29

brain injuries ................... 2-12, 2-85, 4-8, 4-21

children ................... 4-2, 4-3, 4-13, 4-14, 4-25

cognition ................................................... 4-29

consulting ................................................. 6-10

consumers................................................. 2-58

databases............................................4-7, 4-10

depression ................................................... 4-8

developmental disabilities .......................... 4-6

dissemination ............................................ 6-10

early intervention...................................... 4-14

education .................................................. 4-14

emotional disorders .................................. 4-16

ethnic groups ............................................ 4-13

family life ..................... 4-10, 4-13, 4-14, 4-25
A-6 Subject Index

financial aid .............................................. 4-14

functional evaluation ................................ 4-29

inclusion ..................................................... 4-6

independent living .............................4-7, 4-10

information resources ......................4-10, 6-10

Internet........................................................ 4-6

intervention ............................................... 2-12

mental health .............................................. 4-3

mental retardation ..............................4-6, 6-10

parents ...................................................... 4-16

policy .......................................................... 8-6

prevention ................................................. 4-25

psychosocial factors ................................. 2-85

questionnaires........................................... 2-85

reading skills ............................................ 4-31

remote service delivery ............................ 2-55

research fellowships ................................... 8-6

schools ...................................................... 4-16

service delivery ...................................4-3, 4-7

social skills ............................................... 4-21

spinal cord injuries ................................... 4-10

students............................................4-16, 4-31

substance abuse .......................................... 4-8

violence .................................................... 2-59

visual impairments ................................... 4-13

youth ..................................................4-2, 4-29

Community living ..........................................2-56

Community resources

caseload management............................... 1-31

databases................................................... 9-51

education .................................................. 8-12

employment .............................................. 1-31

information systems ................................. 3-41

learning disabilities .................................. 8-12

reading skills ............................................ 8-12

research fellowships ................................. 8-12

service delivery ........................................ 9-51

Compliance

ADA Technical Assistance

Programs ......................................... Chapter 7

Computer applications

accommodation ........................................ 3-51

alternative formats.................................... 3-30

attention deficit disorders ......................... 4-37

blind .................................................3-30, 3-32

braille ........................................................ 3-32

brain injuries ............................................. 2-69

communication ......................................... 3-60

computers ................................................. 3-30

daily living ................................................ 4-36

databases................................................... 3-51

deafness .................................................... 3-60

independent living .................................... 4-36

learning disabilities .................................. 4-37

mobile computing ..................................... 4-36

mobility impairments ............................... 3-49

psychosocial factors ................................. 2-69

rehabilitation medicine ............................. 2-69

sign language ............................................ 3-60

speech ....................................................... 3-36

stroke ........................................................ 2-69

technology ................................................ 3-36

tests........................................................... 4-37

training materials ...................................... 3-30

visual impairments ..........................3-30, 3-32

work adjustment ....................................... 3-51

Computers

accessibility .............................................. 3-13

alternative formats.................................... 3-30

blindness................................................... 3-30

cognition ................................................... 3-43

computer applications .............................. 3-30

daily living ................................................ 3-43

education .................................................. 4-34

employment .............................................. 1-30

information systems ................................. 8-27

information technology ............................ 3-13

Internet.............................................1-30, 3-13

management.............................................. 8-27

rural services ............................................ 1-30

self employment ....................................... 1-30

speech ....................................................... 4-34

technology ................................................ 3-43

technology development .......................... 3-48

training...................................................... 3-59

training materials ...................................... 3-30

universal design ........................................ 3-13

visual impairments ................................... 3-30

work transition .......................................... 3-59

Consulting

advocacy ................................................... 9-18

community integration ............................. 6-10
Subject Index A-7

dissemination ............................................ 6-10

information referral .................................. 9-18

information resources ............................... 6-10

mental retardation ..................................... 6-10

peer counseling ......................................... 9-18

Consumers

Technology assistance programs..... Chapter 9

brain injuries ............................................. 2-58

community integration ............................. 2-58

databases............................................4-1, 6-15

dissemination .....................................6-4, 6-15

employment .....................................1-17, 1-23

functional evaluation .................................. 5-4

health care ................................................ 2-67

independent living ...................................... 4-1

information resources ............................... 6-15

integration ................................................... 4-1

Internet...............................................6-4, 6-15

long term care ........................................... 2-73

managed care ............................................ 2-67

nursing homes .......................................... 2-73

outcome .............................................2-58, 5-4

personal assistance services ....................... 4-1

policy ........................................................ 2-67

risk adjustment ......................................... 2-67

rural services ............................................ 9-47

service delivery ........................................ 1-17

surveys.............................................1-17, 1-23

technology .................................................. 6-4

tests............................................................. 5-4

universal design ........................................ 3-42

utilization .................................................... 6-4

vocational rehabilitation ............................. 6-4

Counseling

employment .............................................. 1-28

females...................................................... 4-33

mental health ............................................ 4-33

self esteem ................................................ 4-33

service delivery ........................................ 1-28

severe disabilities ..................................... 1-28

vocational rehabilitation ........................... 1-28

Curriculum

abuse ......................................................... 4-30

females...................................................... 4-30

independent living .................................... 4-30

needs assessment ...................................... 2-75

parents ...................................................... 2-75

participatory action research (PAR) ......... 2-75

personal assistance services ..................... 4-30

prevention ................................................. 4-30

psychiatric disabilities .............................. 2-75

Daily living

cognition ................................................... 3-43

computer applications .............................. 4-36

computers ................................................. 3-43

databases..................................................... 6-6

dissemination .............................................. 6-6

evaluation techniques ................................. 5-8

independent living ...........................4-19, 4-36

information referral .................................... 6-6

mobile computing ..................................... 4-36

musculoskeletal disorders .......................... 5-8

pressure sores ........................................... 2-65

prevalence ................................................... 5-8

psychiatric disabilities .............................. 4-19

spinal cord injuries ................................... 2-65

technology ................................................ 3-43

training...................................................... 4-19

Databases

Model Burn Injury Systems ........... 2-22—2-26

Model SCI Systems ........................ 2-27—2-44

Model TBI Systems ........................ 2-45—2-61

accommodation ........................................ 3-51

advocacy ............................................6-2, 9-39

aging ........................................................... 2-4

arthritis........................................................ 2-4

blindness................................................... 3-54

brain injuries.......................... 2-17, 2-54, 2-89

cerebral palsy.............................................. 2-4

community integration ......................4-7, 4-10

community resources................................ 9-51

computer applications .............................. 3-51

computers ................................................. 8-27

consumers..........................................4-1, 6-15

daily living .................................................. 6-6

disabilities................................................... 6-7

dissemination ...................... 6-5, 6-6, 6-9, 6-15

diversity ...................................................... 6-9

employment .......................................1-12, 3-5

ergonomics ................................................. 3-5

family life ................................................. 4-10

funding...............................................9-1, 9-39

health care .................................................. 2-4
A-8 Subject Index

housing ....................................................... 3-8

independent living .............. 4-1, 4-7, 4-10, 6-5

information referral ................... 3-8, 6-6, 9-39

information resources ....... 4-10, 6-5, 6-7, 6-15

information systems ................................. 8-27

integration ................................................... 4-1

international rehabilitation ........ 2-89, 6-2, 6-9

Internet...................... 3-5, 6-5, 6-7, 6-15, 6-19

land mines .................................................. 3-4

managed care ............................................ 2-86

management.............................................. 8-27

orthotics ...................................................... 3-3

outcome ................ 1-12, 2-9, 2-22, 2-86, 2-89

personal assistance services ....................... 4-1

prosthetics................................................... 3-3

rehabilitation engineering ....................3-3, 3-4

rehabilitation medicine ......................2-9, 2-17

rehabilitation research .........................2-4, 6-9

repetitive strain injuries .............................. 3-5

research utilization ...................... 6-2, 6-5, 6-7

service delivery .................................4-7, 9-51

standards ..................................................... 9-1

statistics .............................................2-9, 2-86

stroke .......................................................... 2-9

tactile systems .......................................... 3-54

technology ................................. 3-3—3-5, 3-8

technology development .......................... 3-54

training...............................................3-8, 9-39

universal design .......................................... 3-8

visual impairments ................................... 3-54

work adjustment ....................................... 3-51

Deafness

blindness................................................... 3-33

closed captioning ...................................... 3-33

communication ......................................... 3-60

computer applications .............................. 3-60

hearing impairments .............. 3-33, 3-39, 3-50

sign language ............................................ 3-60

tests........................................................... 3-50

vision ........................................................ 3-50

visual impairments ................................... 3-33

Depression

abuse ........................................................... 4-8

alcoholism .................................................. 4-8

brain injuries............................ 2-52, 2-55, 4-8

community integration ............................... 4-8

exercise ..................................................... 2-15

spinal cord injuries ..................................... 2-3

stroke .......................................................... 2-9

substance abuse .......................................... 4-8

Developmental disabilities

community integration ............................... 4-6

early intervention ........................................ 8-9

education .................................................... 8-9

inclusion ..................................................... 4-6

Internet...............................................4-6, 4-35

mental retardation ....................................... 4-6

nutrition .................................................... 4-35

planning .................................................... 4-35

research fellowships ................................... 8-9

Disability studies

history ......................................................... 5-7

independent living ...............................5-7, 8-3

Internet........................................................ 5-7

leadership.................................................... 8-3

rehabilitation research .............................. 8-24

research..................................................... 8-15

research fellowships ................ 8-3, 8-15, 8-24

training.............................................8-15, 8-24

Dissemination

Knowledge Dissemination and

Utilization ........................................ Chapter 6

ADA Technical Assistance

Programs ......................................... Chapter 7

Down syndrome...............................................2-8

Driving ...........................................................3-38

Drugs (see also Substance abuse)

brain injuries....................................2-62, 2-63

rehabilitation medicine ....................2-62, 2-63

Early intervention

children ..................................................... 4-14

community integration ............................. 4-14

developmental disabilities .......................... 8-9

education ...........................................4-14, 8-9

family life ................................................. 4-14

financial aid .............................................. 4-14

research fellowships ................................... 8-9
Subject Index A-9

Education

children ..................................................... 4-14

communication disorders ......................... 2-79

community integration ....................2-44, 4-14

community resources................................ 8-12

computers ................................................. 4-34

consumers................................................. 9-45

developmental disabilities .......................... 8-9

dissemination ............................................ 6-17

early intervention ...............................4-14, 8-9

employment ...................... 1-4, 1-26, 6-17, 8-5

family life ................................................. 4-14

financial aid .............................................. 4-14

functional evaluation ................................ 1-26

independent living .................................... 2-44

information resources ............................... 9-45

Internet...................................................... 2-79

leadership.................................................. 4-20

learning disabilities .................................. 8-12

physical disabilities .................................. 2-79

postsecondary education .......................... 6-17

reading skills ...................................2-79, 8-12

rehabilitation medicine ....................2-39, 2-44

research..................................................... 2-39

research fellowships .................. 8-5, 8-9, 8-12

secondary education ................................. 6-17

self-determination ..................................... 4-20

service delivery ........................................ 9-45

speech ....................................................... 4-34

spinal cord injuries ..........................2-39, 2-44

students ..................................................... 6-17

systems analysis ....................................... 9-45

vocational evaluation................................ 1-26

work transition ............................................ 8-5

youth ......................................................... 2-79

Electrical stimulation

motor skills ............................................... 2-77

rehabilitation medicine ....................2-77, 2-88

spinal cord injuries ................................... 2-88

stroke ........................................................ 2-77

Emergent disabilities

abuse ......................................................... 5-10

autoimmune disorders .....................1-22, 4-17

chronic fatigue syndrome ......................... 4-17

employment .......................................1-9, 1-22

females...................................................... 5-10

HIV ....................................................1-9, 1-22

independent living ...................................... 4-4

Internet........................................................ 1-9

intervention ............................................... 4-17

participatory action research (PAR) .......... 4-4,

4-17

rehabilitation medicine ............................. 2-14

rehabilitation research ................................ 4-4

rehabilitation services............................... 2-14

statistics ...................................................... 5-5

substance abuse .......................................... 1-9

systems analysis ......................................... 5-5

violence .................................................... 5-10

work transition .......................................... 1-22

Emotional disorders

behavior disorders ................... 1-27, 4-9, 4-16

children ....................................................... 4-9

community integration ............................. 4-16

employment .............................................. 1-27

family life ................................................... 4-9

mental health .............................................. 4-9

parents ...................................................... 4-16

schools ...................................................... 4-16

students ..................................................... 4-16

work transition .......................................... 1-27

youth ......................................................... 1-27

Employment

Employment Outcomes .................... Chapter 1

ADA Technical Assistance

Programs ......................................... Chapter 7

aging ......................................................... 2-13

American Indians/Native Americans ......... 5-1

careers....................................................... 8-26

community integration ............................. 2-42

databases..................................................... 3-5

dissemination ............................................ 6-17

education ...........................................6-17, 8-5

ergonomics ................................................. 3-5

ethnic groups .............................................. 2-7

health care ................................................ 2-13

independent living .................................... 4-23

multiple sclerosis ...................................... 2-13

neuromuscular disorders .......................... 2-13

postsecondary education .......................... 6-17

rehabilitation medicine ....................2-13, 2-42

rehabilitation services................................. 2-7

repetitive strain injuries .............................. 3-5

research fellowships ..........................8-5, 8-26
A-10 Subject Index

secondary education ................................. 6-17

spinal cord injuries ................................... 2-42

SSI ............................................................ 4-23

students ..................................................... 6-17

technology .................................................. 3-5

training............................................. 1-11, 8-26

vocational rehabilitation ............................. 5-1

work transition ......................... 1-22, 1-27, 8-5

youth ................................................1-27, 4-23

Epilepsy .........................................................4-15

Ergonomics

databases..................................................... 3-5

employment ................................................ 3-5

Internet........................................................ 3-5

repetitive strain injuries .............................. 3-5

technology .................................................. 3-5

Ethnic groups

ADA ........................................................... 7-1

aging ......................................................... 2-68

agriculture ................................................. 2-64

children ..................................................... 4-13

community integration ............................. 4-13

employment ................................................ 2-7

family life ................................................. 4-13

females...................................................... 2-68

health care ................................................ 2-68

implementation ........................................... 7-1

leadership.................................................. 4-11

mental health .............................................. 5-9

needs assessment ........................................ 7-1

participatory action research (PAR) ......... 2-64

professional training ................................... 8-2

rehabilitation services................................. 2-7

rural services ............................................ 2-64

service delivery ........................................ 2-64

spinal cord injuries ................................... 2-68

visual impairments ................................... 4-13

Evaluation

Model Burn Injury Systems ........... 2-22—2-26

Model SCI Systems ........................ 2-27—2-44

Model TBI Systems ........................ 2-45—2-61

back pain .................................................... 8-8

cognition ................................................... 2-87

communication ......................................... 3-20

memory ..................................................... 2-87

multiple sclerosis ...................................... 2-87

psychiatric disabilities .............................. 8-17

psychological aspects ............................... 8-17

remote service delivery ...................3-20, 3-27

research fellowships ..........................8-8, 8-17

research methodology .............................. 8-17

rural services ............................................ 3-20

telecommunications.................................. 3-27

tests....................................................4-18, 8-8

training...................................................... 8-17

vocational rehabilitation ........................... 4-18

Evaluation techniques

brain injuries ............................................. 3-38

children ..................................................... 3-57

consumers................................................... 5-4

daily living .................................................. 5-8

driving ...................................................... 3-38

functional evaluation .................................. 5-4

incidence..................................................... 5-8

musculoskeletal disorders .......................... 5-8

outcome .............................................4-18, 5-4

physical fitness ......................................... 3-57

prevalence ................................................... 5-8

technology development .......................... 3-57

transportation ............................................ 3-38

vocational rehabilitation ........................... 4-18

Exercise

arthritis.............................................2-10, 2-83

brain injuries ............................................. 2-76

children ..................................................... 2-83

disabilities................................................. 2-15

health care .......................................2-10, 2-15

limbs ......................................................... 2-76

nutrition .................................................... 2-71

obesity ...................................................... 2-71

older adults ............................................... 2-19

paraplegia ................................................. 2-71

participatory action research (PAR) ......... 2-10

poliomyelitis............................................. 2-19

recreation .................................................. 2-15

rehabilitation medicine ............................. 2-10

research..................................................... 2-15

spasticity ................................................... 2-76

youth ......................................................... 2-83

Family life

behavior disorders ...................................... 4-9

behavior problems .................................... 4-25

brain injuries.......................... 2-12, 2-20, 2-85
Subject Index A-11

children ..... 2-6, 4-9, 4-13, 4-14, 4-25, 5-3, 6-1

community integration ...................2-12, 2-85,

4-10, 4-13, 4-14, 4-25

databases................................................... 4-10

dissemination .............................................. 6-1

diversity .................................................... 8-16

early intervention...................................... 4-14

education .................................................. 4-14

emotional disorders .................................... 4-9

ethnic groups ............................................ 4-13

financial aid .............................................. 4-14

health care .................................................. 2-6

independent living .................................... 4-10

information resources ............................... 4-10

intervention ............................................... 2-12

managed care .............................................. 2-6

mental health .............................................. 4-9

parenting with a disability .................4-12, 6-1

parents ...................................................... 4-12

policy .......................................................... 5-3

prevention ................................................. 4-25

psychosocial factors ................................. 2-85

questionnaires........................................... 2-85

rehabilitation medicine ............................. 2-20

rehabilitation research .............................. 8-16

remote service delivery .............................. 2-6

research fellowships ................................. 8-16

service delivery .......................................... 6-1

spinal cord injuries ................................... 4-10

training...................................................... 8-16

visual impairments ................................... 4-13

youth ..................................................4-12, 5-3

Fellowships

Switzer Fellows ............................... 8-3—8-12

NIDRR Scholars ............................ 8-28—8-29

Financial aid

advocacy ................................................... 9-52

brain injuries ............................................. 2-53

children ..................................................... 4-14

community integration ............................. 4-14

early intervention...................................... 4-14

education .................................................. 4-14

family life ................................................. 4-14

rehabilitation medicine ............................. 2-53

rural services .....................................2-53, 9-8

training...................................................... 9-52

transportation accessibility ....................... 2-53

Functional evaluation

Health and Function........................ Chapter 2

adults ........................................................ 4-29

behavioral support .................................... 4-29

brain injuries ............................................. 2-50

children ..................................................... 3-16

cognition ................................................... 4-29

communication ......................................... 2-74

community integration ............................. 4-29

consumers................................................... 5-4

education .................................................. 1-26

employment .............................................. 1-26

mobility .................................................... 3-16

outcome ................................... 2-50, 5-4, 8-22

policy ........................................................ 8-22

powered wheelchairs ................................ 3-16

rehabilitation medicine ....................2-50, 2-74

rehabilitation research .....................2-50, 8-22

research fellowships ................................. 8-22

technology ................................................ 3-16

tests............................................................. 5-4

training...................................................... 8-22

vocational evaluation................................ 1-26

youth ......................................................... 4-29

Funding

Technology assistance programs..... Chapter 9

Geriatric rehabilitation

aging ......................................................... 8-25

cognition ................................................... 8-25

physiology ................................................ 8-25

research fellowships ................................. 8-25

training.............................................8-22, 8-25

Health care

Health and Function........................ Chapter 2

children ..................................................... 8-11

research fellowships ........................ 8-11, 8-19

service delivery ........................................ 8-11

training...................................................... 8-19

Health promotion

cerebral palsy............................................ 2-11

disability management.............................. 2-90

females...................................................... 2-90

health care .........................................2-1, 2-66

information resources ............................... 2-66

Internet...................................................... 2-11
A-12 Subject Index

long term disabilities ................................ 2-11

multiple sclerosis ...................................... 2-11

remote service delivery .............................. 2-1

spinal cord injuries ......... 2-1, 2-11, 2-66, 2-80

Hearing aids ...................................................3-31

Hearing impairments

alternative communication ....................... 3-31

blindness................................................... 3-33

closed captioning ...................................... 3-33

deafness ................................. 3-33, 3-39, 3-50

employability .............................................. 1-1

employment .........................................1-1, 1-2

hearing aids .............................................. 3-31

mental health .............................................. 1-2

needs assessment ........................................ 1-1

rehabilitation engineering ........................... 3-9

rehabilitation research ................................ 3-9

service delivery .......................................... 1-1

technology .................................................. 3-9

tests........................................................... 3-50

vision ........................................................ 3-50

visual impairments ................................... 3-33

History

disability studies..................................5-7, 8-3

independent living ...............................5-7, 8-3

Internet........................................................ 5-7

HIV

autoimmune disorders .............................. 1-22

emergent disabilities..........................1-9, 1-22

employment .......................................1-9, 1-22

Internet........................................................ 1-9

substance abuse .......................................... 1-9

work transition .......................................... 1-22

Home modification ..........................................3-6

Housing

advocacy ................................................... 3-11

databases..................................................... 3-8

information referral ........................... 3-8, 3-11

rehabilitation research .............................. 3-11

surveys...................................................... 4-24

technology ......................................... 3-8, 3-11

training........................................................ 3-8

universal design ................................. 3-8, 3-11

Implementation

ADA Technical Assistance

Programs ......................................... Chapter 7

Independent living

Independent Living and

Community Integration ................... Chapter 3

abuse ......................................................... 4-30

advocacy ..........................................9-30, 9-65

burns ................................................2-26, 4-32

children ..................................................... 4-32

community integration ............ 2-44, 4-7, 4-10

computer applications .............................. 4-36

consumers ....................... 4-1, 9-47, 9-60, 9-65

curriculum ................................................ 4-30

daily living .......................................4-19, 4-36

databases............................. 4-1, 4-7, 4-10, 6-5

disability studies..................................5-7, 8-3

dissemination .......................................6-3, 6-5

education .................................................. 2-44

emergent disabilities................................... 4-4

employment .............................................. 4-23

family life ................................................. 4-10

females...................................................... 4-30

funding...................................................... 9-60

history ......................................................... 5-7

information resources ............... 4-10, 6-3, 6-5,

9-32, 9-50

integration ................................................... 4-1

Internet......................................... 5-7, 6-3, 6-5

leadership.................................................... 8-3

mental health ............................................ 4-32

mobile computing ..................................... 4-36

needs assessment ...................................... 9-42

outcome ...........................................2-26, 8-20

participatory action research (PAR) ........ 2-34,

4-4

personal assistance services .... 2-36, 4-1, 4-30

prevention ................................................. 4-30

program evaluation ................................... 2-34

psychiatric disabilities .............................. 4-19

psychiatric rehabilitation ............................ 8-1

psychiatry ................................................... 8-1

psychosocial factors ................................. 9-30

rehabilitation medicine ...................2-26, 2-34,

2-36, 2-44

rehabilitation research .........................4-4, 8-1

remote service delivery ............................ 2-36

research fellowships ..........................8-3, 8-20
Subject Index A-13

research utilization ..................................... 6-5

rural services ...................................2-26, 9-47

service delivery .................................4-7, 9-30

spinal cord injuries ....... 2-34, 2-36, 2-44, 4-10

SSI ............................................................ 4-23

supported employment ............................. 9-42

training.............................................4-19, 8-20

vocational rehabilitation ........................... 8-20

youth ......................................................... 4-23

Information referral

ADA Technical Assistance

Programs ......................................... Chapter 7

Technology assistance programs..... Chapter 9

advocacy ................................................... 3-11

daily living .................................................. 6-6

databases..............................................3-8, 6-6

dissemination ..................................... 6-6, 7-11

housing .............................................. 3-8, 3-11

rehabilitation research .............................. 3-11

technology ......................................... 3-8, 3-11

training........................................................ 3-8

universal design ................................. 3-8, 3-11

Information resources

ADA Technical Assistance

Programs ......................................... Chapter 7

Technology assistance programs..... Chapter 9

accessibility .............................................. 6-12

aging ........................................................... 3-6

community integration ....................4-10, 6-10

consulting ................................................. 6-10

consumers................................................. 6-15

databases........................... 4-10, 6-5, 6-7, 6-15

disabilities............................................5-2, 6-7

dissemination .......... 6-3, 6-5, 6-10, 6-12, 6-15

family life ................................................. 4-10

health care .........................................2-2, 2-66

health promotion....................................... 2-66

home modification ...................................... 3-6

independent living ..................... 4-10, 6-3, 6-5

Internet............... 2-2, 6-3, 6-5, 6-7, 6-12, 6-15

mental retardation ..................................... 6-10

mobility ...................................................... 3-6

neuromuscular disorders ............................ 2-2

psychosocial factors ................................... 2-2

rehabilitation engineering ........................... 3-6

rehabilitation medicine ............................. 2-32

rehabilitation research .........................2-2, 5-2

research utilization ..............................6-5, 6-7

spinal cord injuries ................ 2-32, 2-66, 4-10

statistics .............................................2-32, 5-2

travel ......................................................... 6-12

Information systems

community resources................................ 3-41

computers ................................................. 8-27

databases................................................... 8-27

management.............................................. 8-27

Information technology

accessibility .....................................3-13, 3-15

computers ................................................. 3-13

Internet...................................................... 3-13

universal design ...............................3-13, 3-15

Interagency cooperation

Technology assistance programs..... Chapter 9

International rehabilitation

advocacy ..................................................... 6-2

brain injuries ............................................. 2-89

databases.................................... 2-89, 6-2, 6-9

dissemination .............................................. 6-9

diversity ...................................................... 6-9

outcome .................................................... 2-89

rehabilitation research ................................ 6-9

research utilization ..................................... 6-2

Internet

accessibility ........................... 3-13, 6-12, 6-18

ADA ......................................................... 6-13

blindness................................................... 3-34

brain injuries ............................................. 2-55

cerebral palsy............................................ 2-11

communication devices ............................ 3-44

communication disorders ......................... 2-79

community integration ......................2-55, 4-6

computers ........................................1-30, 3-13

consumers..........................................6-4, 6-15

databases................... 3-5, 6-5, 6-7, 6-15, 6-19

developmental disabilities .................4-6, 4-35

disabilities................................................... 6-7

disability studies......................................... 5-7

dissemination ................... 6-3—6-5, 6-8, 6-12,

6-15, 6-18

education .................................................. 2-79

emergent disabilities................................... 1-9
A-14 Subject Index

employment ...................... 1-9, 1-30, 1-32, 3-5

ergonomics ................................................. 3-5

health care .................................................. 2-2

health promotion....................................... 2-11

history ......................................................... 5-7

HIV ............................................................. 1-9

inclusion ..................................................... 4-6

independent living ....................... 5-7, 6-3, 6-5

information resources ................. 2-2, 6-3, 6-5,

6-7, 6-12, 6-15

information technology ............................ 3-13

language.................................................... 3-46

long term disabilities ................................ 2-11

mental retardation ....................................... 4-6

multiple sclerosis ...................................... 2-11

neuromuscular disorders ............................ 2-2

nutrition .................................................... 4-35

older adults ............................................... 4-26

physical disabilities .................................. 2-79

planning .................................................... 4-35

policy ........................................................ 6-13

psychosocial factors ................................... 2-2

reading skills ............................................ 2-79

recreation .................................................. 6-18

rehabilitation medicine ............................. 2-55

rehabilitation research ................................ 2-2

remote service delivery ...................2-55, 3-44

repetitive strain injuries .............................. 3-5

research utilization ..............................6-5, 6-7

rural services ...................................1-30, 3-44

self care .................................................... 4-26

self employment ....................................... 1-30

service delivery ........................................ 4-26

spinal cord injuries ................................... 2-11

students ..................................................... 1-29

substance abuse .......................................... 1-9

technology ................................. 3-5, 3-44, 6-4

telecommunications.................................. 3-34

television .................................................. 3-34

training...............................................3-46, 6-8

travel ......................................................... 6-12

universal design ....................... 3-13, 6-8, 6-16

utilization .................................................... 6-4

visual impairments ................................... 3-34

vocational rehabilitation ............................. 6-4

work transition .......................................... 1-29

youth ................................................2-79, 3-44

Intervention

autoimmune disorders .............................. 4-17

brain injuries ............................................. 2-12

chronic fatigue syndrome ......................... 4-17

community integration ............................. 2-12

emergent disabilities ................................. 4-17

epilepsy..................................................... 4-15

family life ................................................. 2-12

outcome .................................................... 4-15

participatory action research (PAR) ......... 4-17

rural services ............................................ 4-15

youth ......................................................... 4-15

Land mines ......................................................3-4

Language

communication devices ............................ 3-25

Internet...................................................... 3-46

reading skills ............................................ 3-25

training...................................................... 3-46

Leadership

disability studies......................................... 8-3

education .................................................. 4-20

ethnic groups ............................................ 4-11

independent living ...................................... 8-3

research fellowships ................................... 8-3

self-determination ..................................... 4-20

Learning disabilities

attention deficit disorders ......................... 4-37

children ..................................................... 4-28

community resources................................ 8-12

computer applications .............................. 4-37

education .................................................. 8-12

reading skills ............................................ 8-12

research fellowships ................................. 8-12

spina bifida ............................................... 4-28

tests........................................................... 4-37

Limbs

brain injuries ............................................. 2-76

exercise ..................................................... 2-76

sensory aids .............................................. 3-55

spasticity ................................................... 2-76

technology development .......................... 3-55

Long term disabilities .................................... 2-11
Subject Index A-15

Macular degeneration ....................................3-22

Managed care

children ....................................................... 2-6

consumers................................................. 2-67

databases................................................... 2-86

family life ................................................... 2-6

health care ................................. 2-5, 2-6, 2-67

outcome .................................................... 2-86

policy ........................................................ 2-67

remote service delivery .............................. 2-6

risk adjustment ......................................... 2-67

spinal cord injuries ................................... 2-86

statistics .................................................... 2-86

Math skills .....................................................3-58

Memory

brain injuries....................................2-21, 2-81

cognition ................................................... 2-87

evaluation ................................................. 2-87

multiple sclerosis ...................................... 2-87

rehabilitation medicine ....................2-21, 2-81

Mental health

behavior disorders ...................................... 4-9

brain injuries ............................................. 2-78

burns ......................................................... 4-32

children ...................................... 4-3, 4-9, 4-32

community integration ............................... 4-3

counseling ................................................. 4-33

emotional disorders .................................... 4-9

employment ................................................ 1-2

ethnic groups .............................................. 5-9

family life ................................................... 4-9

females...................................................... 4-33

health care ................................................ 2-78

hearing impairments ................................... 1-2

independent living .................................... 4-32

remote service delivery ............................ 2-78

rural services ............................................ 2-78

self esteem ................................................ 4-33

service delivery .......................................... 4-3

teleconferencing ....................................... 2-78

Mental retardation

aging ........................................................... 2-8

community integration ......................4-6, 6-10

consulting ................................................. 6-10

developmental disabilities .......................... 4-6

dissemination ............................................ 6-10

down syndrome .......................................... 2-8

health care .................................................. 2-8

inclusion ..................................................... 4-6

information resources ............................... 6-10

Internet........................................................ 4-6

Mental stress ..................................................4-27

Mobile computing .........................................4-36

Mobility

aging ........................................................... 3-6

children ............................................3-16, 3-19

functional evaluation ................................ 3-16

home modification ...................................... 3-6

information resources ................................. 3-6

physical disabilities .................................. 3-56

powered wheelchairs ................................ 3-16

rehabilitation engineering ..................3-6, 3-19

technology ................................................ 3-16

technology development .......................... 3-56

wheelchairs............................................... 3-56

Model programs

Listings for NIDRR’s model systems can be

found in Chapter 2, with Model Burn Injury

Systems on pages 2-22—2-26, Spinal Cord

Injury Systems on pages 2-27–2-44, and Model

Traumatic Brain Injury Systems on pages 2-

45—2-61. Cross-references include: Clinical

management, Community integration, Evaluation, Model programs, Outcome, Psychosocial

factors, Rehabilitation medicine, Rehabilitation

research, Rehabilitation services, Service

delivery, Statistics, Violence, and Vocational

rehabilitation.

Motor skills....................................................2-77

Multiple sclerosis

aging ......................................................... 2-13

cerebral palsy............................................ 2-11

cognition ................................................... 2-87

employment .............................................. 2-13

evaluation ................................................. 2-87

health care ................................................ 2-13

health promotion....................................... 2-11
A-16 Subject Index

Internet...................................................... 2-11

long term disabilities ................................ 2-11

memory ..................................................... 2-87

neuromuscular disorders .......................... 2-13

rehabilitation medicine ............................. 2-13

spinal cord injuries ................................... 2-11

Muscular dystrophy .......................................3-26

Musculoskeletal disorders ...............................5-8

Needs assessment

ADA Technical Assistance

Programs ......................................... Chapter 7

Technology assistance programs..... Chapter 9

curriculum ................................................ 2-75

employability .............................................. 1-1

employment ................................................ 1-1

hearing impairments ................................... 1-1

parents ...................................................... 2-75

participatory action research (PAR) ......... 2-75

psychiatric disabilities .............................. 2-75

service delivery .......................................... 1-1

Neuromuscular disorders

aging ......................................................... 2-13

communication devices ............................ 3-24

employment .............................................. 2-13

health care .........................................2-2, 2-13

information resources ................................. 2-2

Internet........................................................ 2-2

multiple sclerosis ...................................... 2-13

orthotics .................................................... 8-14

prosthetics................................................. 8-14

psychosocial factors ................................... 2-2

rehabilitation engineering ......................... 8-14

rehabilitation medicine ............................. 2-13

rehabilitation research ................................ 2-2

research fellowships ................................. 8-14

speech synthesis ....................................... 3-24

training...................................................... 8-14

NIDRR Scholars ................................ 8-28—8-29

Nursing homes ...............................................2-73

Nutrition

developmental disabilities ........................ 4-35

exercise ..................................................... 2-71

Internet...................................................... 4-35

obesity ...................................................... 2-71

paraplegia ................................................. 2-71

planning .................................................... 4-35

Obesity

exercise ..................................................... 2-71

nutrition .................................................... 2-71

paraplegia ................................................. 2-71

spinal cord injuries ................................... 2-37

Occupational therapy .....................................3-53

Older adults

exercise ..................................................... 2-19

Internet...................................................... 4-26

poliomyelitis............................................. 2-19

self care .................................................... 4-26

service delivery ........................................ 4-26

Orthotics

children ....................................................... 3-1

databases..................................................... 3-3

muscular dystrophy .................................. 3-26

neuromuscular disorders .......................... 8-14

physical disabilities .................................... 3-1

prosthetics..........................................3-3, 8-14

rehabilitation engineering .......... 3-1, 3-3, 8-14

research fellowships ................................. 8-14

stroke ........................................................ 3-17

technology .................................................. 3-3

training...................................................... 8-14

Outcome

Model Burn Injury Systems ........... 2-22—2-26

Model SCI Systems ........................ 2-27—2-44

Model TBI Systems ........................ 2-45—2-61

cancer........................................................ 8-10

consumers................................................... 5-4

databases......................... 1-12, 2-9, 2-86, 2-89

employment .................... 1-5, 1-12, 1-19, 1-25

epilepsy..................................................... 4-15

evaluation ................................................. 4-18

functional evaluation .........................5-4, 8-22

independent living .................................... 8-20

international rehabilitation ....................... 2-89

intervention ............................................... 4-15

managed care ............................................ 2-86

mental illness ...................................1-19, 1-25
Subject Index A-17

physical disabilities .................................... 8-4

policy .................................................1-5, 8-22

psychiatric disabilities .............................. 1-19

psychology................................................ 1-19

religion...................................................... 8-10

research fellowships ....... 8-4, 8-10, 8-20, 8-22

stroke .......................................................... 2-9

tests....................................................4-18, 5-4

training.............................................8-20, 8-22

vocational rehabilitation ........ 1-25, 4-18, 8-20

youth ......................................................... 4-15

Paraplegia ......................................................2-71

Parenting with a disability

children ....................................................... 6-1

dissemination .............................................. 6-1

family life ..........................................4-12, 6-1

parents ...................................................... 4-12

service delivery .......................................... 6-1

youth ......................................................... 4-12

Parents

behavior disorders .................................... 4-16

community integration ............................. 4-16

curriculum ................................................ 2-75

emotional disorders .................................. 4-16

family life ................................................. 4-12

needs assessment ...................................... 2-75

parenting with a disability ........................ 4-12

participatory action research (PAR) ......... 2-75

psychiatric disabilities .............................. 2-75

schools ...................................................... 4-16

students ..................................................... 4-16

youth ......................................................... 4-12

Participatory action research (PAR)

agriculture ................................................. 2-64

arthritis...................................................... 2-10

autoimmune disorders .............................. 4-17

brain injuries ............................................. 8-23

chronic fatigue syndrome ......................... 4-17

curriculum ................................................ 2-75

emergent disabilities..........................4-4, 4-17

ethnic groups ............................................ 2-64

exercise ..................................................... 2-10

health care ................................................ 2-10

independent living .............................2-34, 4-4

intervention ............................................... 4-17

job accommodation .................................. 2-10

mental illness .............................................. 4-5

needs assessment ...................................... 2-75

parents ...................................................... 2-75

program evaluation ................................... 2-34

psychiatric disabilities .............................. 2-75

psychiatry ................................................... 4-5

rehabilitation medicine .......... 2-10, 2-34, 8-23

rehabilitation research ................................ 4-4

research fellowships ................................. 8-23

rural services ............................................ 2-64

service delivery ........................................ 2-64

spinal cord injuries ................................... 2-34

training...................................................... 8-23

Peer counseling and support

advocacy ................................................... 9-18

brain injuries............................ 2-46, 2-55, 4-8

chronic fatigue syndrome ......................... 4-17

community integration ............................... 4-8

consulting ................................................. 9-18

health promotion....................................... 2-80

independent living ...................................... 4-7

information referral .................................. 9-18

leadership.................................................... 8-3

spinal cord injuries ................ 2-29, 2-37, 2-38

women .............................................1-13, 4-33

youth ......................................................... 4-31

Personal assistance services

abuse ......................................................... 4-30

consumers................................................... 4-1

curriculum ................................................ 4-30

databases..................................................... 4-1

females...................................................... 4-30

independent living ................... 2-36, 4-1, 4-30

integration ................................................... 4-1

prevention ................................................. 4-30

rehabilitation medicine ............................. 2-36

remote service delivery ............................ 2-36

spinal cord injuries ................................... 2-36

Pharmacology

behavior problems .................................... 2-18

brain injuries....................................2-18, 2-82

rehabilitation medicine ....................2-18, 2-82

Physical disabilities

children ....................................................... 3-1

communication disorders ......................... 2-79
A-18 Subject Index

education .................................................. 2-79

Internet...................................................... 2-79

mobility .................................................... 3-56

orthotics ...................................................... 3-1

outcome ...................................................... 8-4

reading skills ............................................ 2-79

rehabilitation engineering ........................... 3-1

rehabilitation medicine ............................... 8-4

research fellowships ................................... 8-4

technology development .......................... 3-56

wheelchairs............................................... 3-56

youth ......................................................... 2-79

Physical fitness

children ..................................................... 3-57

evaluation techniques ............................... 3-57

paraplegia ................................................. 2-71

technology development .......................... 3-57

Policy

accessibility .....................................2-16, 9-63

ADA ................................................1-24, 6-13

advocacy ......................... 5-6, 9-34, 9-38, 9-46

barriers ...............................................1-15, 5-6

children ....................................................... 5-3

community integration ............................... 8-6

consumers................................................. 2-67

employment .............. 1-3, 1-5, 1-8, 1-15, 1-24

empowerment ............................................. 5-6

family life ................................................... 5-3

functional evaluation ................................ 8-22

funding...................................................... 9-46

health care .......................................2-16, 2-67

information referral ............... 9-38, 9-62, 9-63

information resources ............................... 9-34

interagency cooperation ........................... 9-62

Internet...................................................... 6-13

legislation ................................................. 9-38

managed care ............................................ 2-67

mental illness ............................................ 1-15

outcome .............................................1-5, 8-22

rehabilitation research .............................. 8-22

research fellowships ..........................8-6, 8-22

risk adjustment ......................................... 2-67

service delivery ..................... 9-34, 9-38, 9-63

training.......................... 8-22, 9-34, 9-62, 9-63

youth ........................................................... 5-3

Poliomyelitis ..................................................2-19

Posture ...........................................................3-40

Powered wheelchairs

functional evaluation ................................ 3-16

wheelchair design ..................................... 3-12

Program evaluation

advocacy ................................................... 9-22

consumers................................................. 9-43

employment .............................................. 1-10

funding...................................................... 9-22

independent living .................................... 2-34

information referral .................................. 9-43

mental illness ............................................ 1-10

outcome .................................................... 2-33

participatory action research (PAR) ......... 2-34

rehabilitation medicine ....................2-33, 2-34

service delivery ..................... 2-33, 9-22, 9-43

spinal cord injuries ..........................2-33, 2-34

training.............................................9-22, 9-43

vocational rehabilitation ........................... 1-10

Prosthetics

ambulation ................................................ 3-45

amputations ........................... 3-23, 3-29, 3-45

bioengineering .......................................... 3-29

databases..................................................... 3-3

neuromuscular disorders .......................... 8-14

orthotics .............................................3-3, 8-14

rehabilitation engineering ........ 3-3, 3-29, 8-14

research fellowships ................................. 8-14

technology .........................................3-3, 3-45

training.............................................3-23, 8-14

Protection and Advocacy for

Assistive Technology.....................................9-67

Psychiatric disabilities

barriers ...................................................... 1-15

curriculum ................................................ 2-75

daily living ................................................ 4-19

employment ........ 1-10, 1-15, 1-18, 1-19, 1-25

evaluation ................................................. 8-17

independent living .................................... 4-19

mental illness ...................................1-18, 1-19

needs assessment ...................................... 2-75

outcome ...........................................1-19, 1-25

parents ...................................................... 2-75

participatory action research (PAR)...2-75, 4-5
Subject Index A-19

policy ........................................................ 1-15

program evaluation ................................... 1-10

psychiatry ................................................... 4-5

psychological aspects ............................... 8-17

psychology................................................ 1-19

psychosocial factors ................................. 1-18

research fellowships ................................. 8-17

research methodology .............................. 8-17

supported employment ............................. 1-18

training.............................................4-19, 8-17

vocational rehabilitation ........ 1-10, 1-18, 1-25

Psychiatric rehabilitation

independent living ...................................... 8-1

psychiatry ................................................... 8-1

rehabilitation research ................................ 8-1

Psychiatry

independent living ...................................... 8-1

mental illness .............................................. 4-5

participatory action research (PAR) ........... 4-5

psychiatric rehabilitation ............................ 8-1

rehabilitation research ................................ 8-1

Psychological aspects

evaluation ................................................. 8-17

psychiatric disabilities .............................. 8-17

research fellowships ................................. 8-17

research methodology .............................. 8-17

training...................................................... 8-17

Psychology

employment .............................................. 1-19

mental illness ............................................ 1-19

outcome .................................................... 1-19

psychiatric disabilities .............................. 1-19

Psychosocial factors

Model Burn Injury Systems ........... 2-22—2-26

Model SCI Systems ........................ 2-27—2-44

Model TBI Systems ........................ 2-45—2-61

advocacy ................................................... 9-30

brain injuries....................................2-69, 2-85

burns ......................................................... 2-23

community integration ............................. 2-85

computer applications .............................. 2-69

employment .............................................. 1-18

family life ................................................. 2-85

health care .................................................. 2-2

independent living .................................... 9-30

information resources ................................. 2-2

Internet........................................................ 2-2

longitudinal studies .................................. 4-22

mental illness ............................................ 1-18

neuromuscular disorders ............................ 2-2

psychiatric disabilities .............................. 1-18

qualitative analysis ................................... 4-22

questionnaires........................................... 2-85

rehabilitation medicine ............................. 2-69

rehabilitation research ................................ 2-2

service delivery ........................................ 9-30

spinal cord injuries ................................... 4-22

stroke ........................................................ 2-69

supported employment ............................. 1-18

vocational rehabilitation ........................... 1-18

Protection and Advocacy

Assistive Technology .................... 9-67—9-73

Public accommodation

ADA Technical Assistance

Programs ......................................... Chapter 7

Reading skills

communication devices ............................ 3-25

communication disorders ......................... 2-79

community integration ............................. 4-31

community resources................................ 8-12

education .........................................2-79, 8-12

integration ................................................. 4-31

Internet...................................................... 2-79

language.................................................... 3-25

learning disabilities .................................. 8-12

macular degeneration ............................... 3-22

physical disabilities .................................. 2-79

research fellowships ................................. 8-12

students ..................................................... 4-31

visual impairments ................................... 3-22

youth ......................................................... 2-79

Recreation

accessibility .............................................. 6-18

disabilities................................................. 2-15

dissemination ............................................ 6-18

exercise ..................................................... 2-15

health care ................................................ 2-15

Internet...................................................... 6-18

research..................................................... 2-15
A-20 Subject Index

Rehabilitation

American Indians/Native Americans ......... 5-1

arthritis...................................................... 2-83

blindness ..................................................... 1-6

brain injuries.......................... 2-46, 2-69, 3-28

children ..................................................... 2-83

computer applications .............................. 2-69

consumers..........................................1-17, 5-4

curriculum ................................................ 2-75

databases..................................................... 2-9

education .................................................. 2-39

electrical stimulation ................................ 2-77

employment ........................ 1-6, 1-7, 1-17, 5-1

exercise ..................................................... 2-83

functional evaluation .................................. 5-4

health care ................................................ 8-19

independent living .................................... 9-37

information resources ............................... 2-32

motor skills ............................................... 2-77

needs assessment ...................................... 2-75

outcome ......... 2-9, 2-29, 2-30, 2-37, 2-43, 5-4

parents ...................................................... 2-75

participatory action research (PAR) ......... 2-75

psychiatric disabilities .............................. 2-75

psychosocial factors ................................. 2-69

rehabilitation engineering ......................... 3-28

rehabilitation research ................................ 1-6

remote service delivery .............................. 1-7

research ............... 2-27, 2-28, 2-35, 2-39, 2-46

research fellowships ................................. 8-19

rural services .............................................. 1-7

service delivery .... 1-7, 1-17, 2-27, 2-28, 2-46

statistics .............................................2-9, 2-32

stroke .............................. 2-9, 2-69, 2-77, 3-28

surveys...................................................... 1-17

technology ................................................ 3-28

tests............................................................. 5-4

training.............................................8-19, 9-37

visual impairments ..................................... 1-6

vocational rehabilitation ............................. 5-1

youth ......................................................... 2-83

Rehabilitation engineering

aging ........................................................... 3-6

amputations .............................................. 3-29

bioengineering .................................3-29, 8-18

brain injuries ............................................. 3-28

children ..............................................3-1, 3-19

databases..............................................3-3, 3-4

dissemination ............................................ 6-14

hearing impairments ................................... 3-9

home modification ...................................... 3-6

information resources ................................. 3-6

land mines .................................................. 3-4

mobility .............................................3-6, 3-19

neuromuscular disorders .......................... 8-14

orthotics ..................................... 3-1, 3-3, 8-14

physical disabilities .................................... 3-1

posture ...................................................... 3-40

prosthetics................................ 3-3, 3-29, 8-14

rehabilitation medicine ............................. 8-18

rehabilitation research ................................ 3-9

remote service delivery .............................. 3-2

research fellowships ........................8-14, 8-18

rural services .............................................. 3-2

safety ........................................................ 3-12

seating ....................................................... 3-12

stroke ........................................................ 3-28

technology ...............3-2—3-4, 3-9, 3-12, 3-28

technology transfer ..................................... 3-7

training.............................................8-14, 8-18

transportation ............................................ 3-12

utilization .................................................. 6-14

wheelchair design ..................................... 3-12

wheelchairs............................................... 3-40

Rehabilitation medicine

Model Burn Injury Systems ........... 2-22—2-26

Model SCI Systems ........................ 2-27—2-44

Model TBI Systems ........................ 2-45—2-61

aging ..................................................2-3, 2-13

arthritis...................................................... 2-10

behavior problems .................................... 2-18

bioengineering .......................................... 8-18

brain injuries ................ 2-17, 2-18, 2-20, 2-21,

2-62, 2-63, 2-69, 2-72, 2-81, 2-82, 8-23

communication ......................................... 2-74

computer applications .............................. 2-69

drugs ................................................2-62, 2-63

education .........................................2-39, 2-44

electrical stimulation .......................2-77, 2-88

emergent disabilities ................................. 2-14

employment .............................................. 2-13

exercise ..................................................... 2-10

family life ................................................. 2-20

functional evaluation ................................ 2-74

health care ...................... 2-3, 2-10, 2-13, 2-45

job accommodation .................................. 2-10
Subject Index A-21

memory ..................................................... 2-21

memory loss ............................................. 2-81

motor skills ............................................... 2-77

multiple sclerosis ...................................... 2-13

neuromuscular disorders .......................... 2-13

outcome ...............................................2-9, 8-4

participatory action research (PAR) ........ 2-10,

2-34, 8-23

pharmacology ..................................2-18, 2-82

physical disabilities .................................... 8-4

rehabilitation engineering ......................... 8-18

rehabilitation research ................................ 2-3

rehabilitation services............................... 2-14

research fellowships ................ 8-4, 8-18, 8-23

statistics ...................................................... 2-9

stroke ....................................... 2-9, 2-69, 2-77

training.............................................8-18, 8-23

youth ......................................................... 2-72

Rehabilitation research

Model Burn Injury Systems ........... 2-22—2-26

Model SCI Systems ........................ 2-27—2-44

Model TBI Systems ........................ 2-45—2-61

advocacy ................................................... 3-11

aging ....................................................2-3, 2-4

arthritis........................................................ 2-4

blindness ..................................................... 1-6

cerebral palsy.............................................. 2-4

databases..............................................2-4, 6-9

disabilities................................................... 5-2

disability studies ....................................... 8-24

dissemination .............................................. 6-9

diversity ...................................................... 6-9

emergent disabilities................................... 4-4

employment ................................................ 1-6

family life ................................................. 8-16

functional evaluation ................................ 8-22

health care .........................................2-2—2-4

hearing impairments ................................... 3-9

housing ..................................................... 3-11

independent living ...............................4-4, 8-1

information referral .................................. 3-11

information resources ..........................2-2, 5-2

international rehabilitation ......................... 6-9

Internet........................................................ 2-2

diversity .................................................... 8-16

neuromuscular disorders ............................ 2-2

outcome .................................................... 8-22

participatory action research (PAR) ........... 4-4

policy ........................................................ 8-22

psychiatric rehabilitation ............................ 8-1

psychiatry ................................................... 8-1

psychosocial factors ................................... 2-2

rehabilitation engineering ........................... 3-9

research fellowships .............. 8-16, 8-22, 8-24

spinal cord injuries ..................................... 2-3

statistics ...................................................... 5-2

technology ......................................... 3-9, 3-11

training................................... 8-16, 8-22, 8-24

universal design ........................................ 3-11

visual impairments ..................................... 1-6

Rehabilitation services

Model Burn Injury Systems ........... 2-22—2-26

Model SCI Systems ........................ 2-27—2-44

Model TBI Systems ........................ 2-45—2-61

emergent disabilities ................................. 2-14

employment ................................................ 2-7

ethnic groups .............................................. 2-7

information resources ............................... 9-35

Religion .........................................................8-10

Remote service delivery

accessibility .....................................3-14, 3-35

brain injuries.......................... 2-48, 2-55, 2-78

children ....................................................... 2-6

communication ......................................... 3-20

communication devices ............................ 3-44

community integration ............................. 2-55

employment ....................................... 1-7, 1-11

evaluation ........................................3-20, 3-27

family life ................................................... 2-6

health care ................................. 2-1, 2-6, 2-78

health promotion......................................... 2-1

independent living .................................... 2-36

Internet.............................................2-55, 3-44

managed care .............................................. 2-6

media ........................................................ 3-35

mental health ............................................ 2-78

personal assistance services ..................... 2-36

rehabilitation engineering ........................... 3-2

rehabilitation medicine .......... 2-36, 2-48, 2-55

research..................................................... 1-11

rural services .......... 1-7, 2-78, 3-2, 3-20, 3-44

service delivery .......................................... 1-7

spinal cord injuries ............................2-1, 2-36

technology ............................... 3-2, 3-35, 3-44
A-22 Subject Index

telecommunications.........................3-14, 3-27

teleconferencing ....................................... 2-78

training...................................................... 1-11

universal design ........................................ 3-14

youth ......................................................... 3-44

Repetitive strain injuries..................................3-5

Research

brain injuries ............................................. 2-46

disabilities................................................. 2-15

disability studies ....................................... 8-15

education .................................................. 2-39

employment .............................................. 1-11

exercise ..................................................... 2-15

health care ................................................ 2-15

recreation .................................................. 2-15

rehabilitation medicine ...................2-27, 2-28,

2-35, 2-39, 2-46

remote service delivery ............................ 1-11

research fellowships ................................. 8-15

service delivery ..................... 2-27, 2-28, 2-46

spinal cord injuries ....... 2-27, 2-28, 2-35, 2-39

training............................................. 1-11, 8-15

Research fellowships

Switzer Fellows ............................... 8-3—8-12

NIDRR Scholars ............................ 8-28—8-29

aging ......................................................... 8-25

back ............................................................ 8-8

back pain .................................................... 8-8

bioengineering .......................................... 8-18

brain injuries......................................8-7, 8-23

cancer........................................................ 8-10

careers....................................................... 8-26

children ..................................................... 8-11

cognition ................................................... 8-25

community integration ............................... 8-6

community resources................................ 8-12

developmental disabilities .......................... 8-9

disability studies ...................... 8-3, 8-15, 8-24

early intervention ........................................ 8-9

education ................................... 8-5, 8-9, 8-12

employment .......................................8-5, 8-26

evaluation ..........................................8-8, 8-17

family life ................................................. 8-16

functional evaluation ................................ 8-22

geriatric rehabilitation .............................. 8-25

health care ....................................... 8-11, 8-19

independent living .............................8-3, 8-20

leadership.................................................... 8-3

learning disabilities .................................. 8-12

diversity .................................................... 8-16

neuromuscular disorders .......................... 8-14

orthotics .................................................... 8-14

outcome .......................... 8-4, 8-10, 8-20, 8-22

participatory action research (PAR) ......... 8-23

physical disabilities .................................... 8-4

physical medicine ..................................... 8-21

physiology ................................................ 8-25

policy .................................................8-6, 8-22

prosthetics................................................. 8-14

psychiatric disabilities .............................. 8-17

psychological aspects ............................... 8-17

reading skills ............................................ 8-12

rehabilitation engineering ................8-14, 8-18

rehabilitation medicine ............ 8-4, 8-18, 8-23

rehabilitation research ........... 8-16, 8-22, 8-24

religion...................................................... 8-10

research..................................................... 8-15

research methodology .............................. 8-17

service delivery ............................... 8-11, 8-13

tests......................................................8-7, 8-8

training........................................... 8-13—8-26

veterans....................................................... 8-7

vocational rehabilitation ........................... 8-20

work transition ............................................ 8-5

Research methodology

evaluation ................................................. 8-17

psychiatric disabilities .............................. 8-17

psychological aspects ............................... 8-17

research fellowships ................................. 8-17

training...................................................... 8-17

Research utilization

advocacy ..................................................... 6-2

databases...................................... 6-2, 6-5, 6-7

disabilities................................................... 6-7

dissemination ..................................... 6-5, 6-11

independent living ...................................... 6-5

information resources ..........................6-5, 6-7

international rehabilitation ......................... 6-2

Internet.................................................6-5, 6-7

Risk adjustment

consumers................................................. 2-67

health care ................................................ 2-67
Subject Index A-23

managed care ............................................ 2-67

policy ........................................................ 2-67

Robotics

students ..................................................... 3-52

Rural services

advocacy ..........................................9-16, 9-49

agriculture ................................................. 2-64

brain injuries ................. 2-52, 2-53, 2-57, 2-78

burns ...................................... 2-23, 2-24, 2-26

children ..................................................... 2-24

communication ......................................... 3-20

communication devices ............................ 3-44

community integration ....................2-24, 2-57

computers ................................................. 1-30

consumers................................................. 9-47

employment .......................................1-7, 1-30

epilepsy..................................................... 4-15

ethnic groups ............................................ 2-64

evaluation ................................................. 3-20

financial aid .......................................2-53, 9-8

funding...............................................9-8, 9-16

health care ................................................ 2-78

Remote service delivery

Epilepsy .................................................... 4-15

independent living ...........................2-26, 9-47

information resources ............................... 9-49

Internet.............................................1-30, 3-44

intervention ............................................... 4-15

mental health ............................................ 2-78

outcome ........................ 2-24, 2-26, 2-57, 4-15

participatory action research (PAR) ......... 2-64

psychosocial factors ................................. 2-23

rehabilitation engineering ........................... 3-2

rehabilitation medicine ...................2-23, 2-24,

 2-26, 2-52, 2-53, 2-57

remote service delivery ............ 1-7, 2-78, 3-2,

3-20, 3-44

self employment ....................................... 1-30

service delivery .................................1-7, 2-64

technology .........................................3-2, 3-44

teleconferencing ....................................... 2-78

transportation accessibility ....................... 2-53

youth ................................................3-44, 4-15

Safety .............................................................3-12

Seating

aging ........................................................... 3-6

safety ........................................................ 3-12

telecommunications.................................. 3-27

transportation ............................................ 3-12

wheelchair design ..................................... 3-12

Secondary education......................................6-17

Self care .........................................................4-26

Self employment

computers ................................................. 1-30

employment .....................................1-20, 1-30

Internet...................................................... 1-30

rural services ............................................ 1-30

technology transfer ................................... 1-21

vocational rehabilitation ..................1-20, 1-21

Self esteem.....................................................4-33

Sensory aids ...................................................3-55

Service delivery

Model Burn Injury Systems ........... 2-22—2-26

Model SCI Systems ........................ 2-27—2-44

Model TBI Systems ........................ 2-45—2-61

ADA Technical Assistance

Programs ......................................... Chapter 7

Technology assistance programs..... Chapter 9

agriculture ................................................. 2-64

children ...................................... 4-3, 6-1, 8-11

community integration .............. 2-41, 4-3, 4-7

consumers................................................. 1-17

counseling ................................................. 1-28

databases............................................2-40, 4-7

dissemination .............................................. 6-1

employability .............................................. 1-1

employment ...................... 1-1, 1-7, 1-17, 1-28

ethnic groups ............................................ 2-64

family life ................................................... 6-1

health care ................................................ 8-11

hearing impairments ................................... 1-1

independent living .............................4-7, 9-30

Internet...................................................... 4-26

mental health .............................................. 4-3

needs assessment ........................................ 1-1

older adults ............................................... 4-26

parenting with a disability .......................... 6-1
A-24 Subject Index

participatory action research (PAR) ......... 2-64

remote service delivery .............................. 1-7

research fellowships ........................ 8-11, 8-13

rural services .....................................1-7, 2-64

self care .................................................... 4-26

severe disabilities ..................................... 1-28

surveys...................................................... 1-17

training...................................................... 8-13

vocational rehabilitation ........................... 1-28

Severe disabilities

counseling ................................................. 1-28

employment .....................................1-16, 1-28

service delivery ........................................ 1-28

vocational rehabilitation ........................... 1-28

Sign language ................................................3-60

Speech

computer applications .............................. 3-36

computers ................................................. 4-34

education .................................................. 4-34

technology ................................................ 3-36

Speech synthesis ............................................3-24

Spina bifida ....................................................4-28

Spinal cord injuries

Model SCI Systems ........................ 2-27—2-44

aging ..................................................2-3, 2-68

cerebral palsy............................................ 2-11

community integration ...................2-41, 2-42,

2-44, 4-10

daily living ................................................ 2-65

databases................................ 2-40, 2-86, 4-10

education .........................................2-39, 2-44

electrical stimulation ................................ 2-88

employment .............................................. 2-42

ethnic groups ............................................ 2-68

evaluation ..................... 2-31, 2-38, 2-40, 2-41

family life ................................................. 4-10

females...................................................... 2-68

health care ........................ 2-1, 2-3, 2-66, 2-68

health promotion............. 2-1, 2-11, 2-66, 2-80

independent living ........ 2-34, 2-36, 2-44, 4-10

information resources ............ 2-32, 2-66, 4-10

Internet...................................................... 2-11

long term disabilities ................................ 2-11

longitudinal studies .................................. 4-22

managed care ............................................ 2-86

multiple sclerosis ...................................... 2-11

outcome ..................... 2-29—2-31, 2-33, 2-37,

2-38, 2-43, 2-86

participatory action research (PAR) ......... 2-34

personal assistance services ..................... 2-36

pressure sores ........................................... 2-65

prevention ................................................. 2-70

program evaluation ..........................2-33, 2-34

psychosocial factors ................................. 4-22

qualitative analysis ................................... 4-22

rehabilitation medicine ......... 2-3, 2-27—2-44,

 2-88

rehabilitation research ................................ 2-3

rehabilitation services......................2-31, 2-38

remote service delivery .....................2-1, 2-36

research ......................... 2-27, 2-28, 2-35, 2-39

service delivery .. 2-27, 2-28, 2-33, 2-40, 2-41

statistics ...........................................2-32, 2-86

thrombosis ................................................ 2-70

SSI .................................................................4-23

Statistics

Model Burn Injury Systems ........... 2-22—2-26

Model SCI Systems ........................ 2-27—2-44

Model TBI Systems ........................ 2-45—2-61

disabilities................................................... 5-2

emergent disabilities................................... 5-5

information resources ................................. 5-2

managed care ............................................ 2-86

rehabilitation research ................................ 5-2

stroke .......................................................... 2-9

systems analysis ......................................... 5-5

Stroke

alternative medicine ................................. 2-84

brain injuries....................................2-69, 3-28

computer applications .............................. 2-69

databases..................................................... 2-9

electrical stimulation ................................ 2-77

motor skills ............................................... 2-77

orthotics .................................................... 3-17

outcome ...................................................... 2-9

psychosocial factors ................................. 2-69

rehabilitation engineering ......................... 3-28

rehabilitation medicine ............ 2-9, 2-69, 2-77

statistics ...................................................... 2-9

technology ................................................ 3-28
Subject Index A-25

Students

behavior disorders .................................... 4-16

community integration ....................4-16, 4-31

dissemination ............................................ 6-17

education .................................................. 6-17

emotional disorders .................................. 4-16

employment .............................................. 6-17

integration ................................................. 4-31

Internet...................................................... 1-29

parents ...................................................... 4-16

postsecondary education .......................... 6-17

reading skills ............................................ 4-31

robotics ..................................................... 3-52

schools ...................................................... 4-16

secondary education ................................. 6-17

work transition .......................................... 1-29

Substance abuse

alcoholism .................................................. 4-8

brain injuries............................................... 4-8

community integration ............................... 4-8

depression ................................................... 4-8

employment ................................................ 1-9

HIV ............................................................. 1-9

Supported employment

employment .............................................. 1-18

independent living .................................... 9-42

mental illness ............................................ 1-18

needs assessment ...................................... 9-42

psychiatric disabilities .............................. 1-18

psychosocial factors ................................. 1-18

training...................................................... 9-42

vocational rehabilitation ........................... 1-18

Surveys

consumers........................................1-17, 1-23

employment .....................................1-17, 1-23

housing ..................................................... 4-24

service delivery ........................................ 1-17

Systems change

Technology assistance programs..... Chapter 9

Tactile systems

blindness................................................... 3-54

databases................................................... 3-54

math skills ................................................ 3-58

technology development .................3-54, 3-58

visual impairments ................................... 3-54

Technical assistance

ADA: ADA Technical Assistance

Programs ......................................... Chapter 7

AT: Technology Assistance

Programs ......................................... Chapter 9

Information technology ............................ 3-15

Technology development

Technology for Access and

Function........................................... Chapter 3

Technology transfer

rehabilitation engineering ........................... 3-7

self employment ....................................... 1-21

vocational rehabilitation ........................... 1-21

Technology

Technology for Access and

Function........................................... Chapter 3

Technology assistance programs..... Chapter 9

dissemination .............................................. 6-4

utilization .................................................... 6-4

vocational rehabilitation ............................. 6-4

Telecommunications

ADA Technical Assistance

Programs ......................................... Chapter 7

accessibility .............................................. 3-14

blindness................................................... 3-34

evaluation ................................................. 3-27

Internet...................................................... 3-34

remote service delivery ...................3-14, 3-27

television .................................................. 3-34

universal design ........................................ 3-14

visual impairments ................................... 3-34

Television

blindness................................................... 3-34

Internet...................................................... 3-34

telecommunications.................................. 3-34

visual impairments ................................... 3-34

Tests

attention deficit disorders ......................... 4-37

back ............................................................ 8-8

back pain .................................................... 8-8

brain injuries............................................... 8-7

computer applications .............................. 4-37

deafness .................................................... 3-50

evaluation ................................................... 8-8
A-26 Subject Index

hearing impairments ................................. 3-50

learning disabilities .................................. 4-37

research fellowships ............................8-7, 8-8

veterans....................................................... 8-7

vision ........................................................ 3-50

Thrombosis

prevention ................................................. 2-70

spinal cord injuries ................................... 2-70

Training

ADA Technical Assistance

Programs ......................................... Chapter 7

Capacity Building for Rehabilitation

Research Training ........................... Chapter 8

Technology assistance programs..... Chapter 9

aging ......................................................... 8-25

amputations .............................................. 3-23

bioengineering .......................................... 8-18

brain injuries ............................................. 8-23

careers....................................................... 8-26

cognition ................................................... 8-25

computers ................................................. 3-59

daily living ................................................ 4-19

databases..................................................... 3-8

disability studies ..............................8-15, 8-24

dissemination .............................................. 6-8

employment ..................................... 1-11, 8-26

evaluation ................................................. 8-17

family life ................................................. 8-16

functional evaluation ................................ 8-22

geriatric rehabilitation .............................. 8-25

health care ................................................ 8-19

housing ....................................................... 3-8

independent living ...........................4-19, 8-20

information referral .................................... 3-8

Internet...............................................3-46, 6-8

language.................................................... 3-46

diversity .................................................... 8-16

neuromuscular disorders .......................... 8-14

orthotics .................................................... 8-14

outcome ...........................................8-20, 8-22

participatory action research (PAR) ......... 8-23

physical medicine ..................................... 8-21

physiology ................................................ 8-25

policy ........................................................ 8-22

prosthetics........................................3-23, 8-14

psychiatric disabilities .....................4-19, 8-17

psychological aspects ............................... 8-17

rehabilitation engineering ................8-14, 8-18

rehabilitation medicine ....................8-18, 8-23

rehabilitation research ........... 8-16, 8-22, 8-24

remote service delivery ............................ 1-11

research ............................................ 1-11, 8-15

research fellowships ...................... 8-13—8-26

research methodology .............................. 8-17

service delivery ........................................ 8-13

technology .................................................. 3-8

universal design ...................................3-8, 6-8

vocational rehabilitation ........................... 8-20

work transition .......................................... 3-59

Training materials ..........................................3-30

Transportation

ADA Technical Assistance

Programs ......................................... Chapter 7

brain injuries....................................2-53, 3-38

driving ...................................................... 3-38

evaluation techniques ............................... 3-38

financial aid .............................................. 2-53

rehabilitation engineering ......................... 3-12

rehabilitation medicine ............................. 2-53

rural services ............................................ 2-53

safety ........................................................ 3-12

seating ....................................................... 3-12

technology ................................................ 3-12

wheelchair design ..................................... 3-12

Travel .............................................................6-12

TTY ...............................................................3-61

Universal design

accessibility ........................... 3-13, 3-14, 3-15

advocacy ................................................... 3-11

computers ................................................. 3-13

consumers................................................. 3-42

databases..................................................... 3-8

dissemination .............................................. 6-8

housing .............................................. 3-8, 3-11

information referral ........................... 3-8, 3-11

information technology ...................3-13, 3-15

Internet..................................... 3-13, 6-8, 6-16

rehabilitation research .............................. 3-11

remote service delivery ............................ 3-14

technology ......................................... 3-8, 3-11

telecommunications.................................. 3-14

training.................................................3-8, 6-8
Subject Index A-27

Utilization

ADA Technical Assistance

Programs ......................................... Chapter 7

consumers................................................... 6-4

dissemination .....................................6-4, 6-14

rehabilitation engineering ......................... 6-14

vocational rehabilitation ............................. 6-4

Veterans ...........................................................8-7

Violence

Model Burn Injury Systems ........... 2-22—2-26

Model SCI Systems ........................ 2-27—2-44

Model TBI Systems ........................ 2-45—2-61

abuse ......................................................... 5-10

emergent disabilities ................................. 5-10

females...................................................... 5-10

Visual impairments

alternative formats.................................... 3-30

blindness..............1-6, 3-30—3-34, 3-47, 3-54

braille ...............................................3-21, 3-32

children ..................................................... 4-13

closed captioning ...................................... 3-33

community integration ............................. 4-13

computer applications .....................3-30, 3-32

computers ................................................. 3-30

databases................................................... 3-54

deafness ...........................................3-33, 3-50

employment ................................................ 1-6

ethnic groups ............................................ 4-13

family life ................................................. 4-13

hearing impairments ................................. 3-33

Internet...................................................... 3-34

macular degeneration ............................... 3-22

reading skills ............................................ 3-22

rehabilitation research ................................ 1-6

tactile systems .......................................... 3-54

technology development .................3-47, 3-54

telecommunications.................................. 3-34

television .................................................. 3-34

tests........................................................... 3-50

training materials ...................................... 3-30

Vocational evaluation ....................................1-26

Vocational rehabilitation

Model Burn Injury Systems ........... 2-22—2-26

Model SCI Systems ........................ 2-27—2-44

Model TBI Systems ........................ 2-45—2-61

American Indians/Native Americans ......... 5-1

consumers................................................... 6-4

counseling ................................................. 1-28

dissemination .............................................. 6-4

employment .......................... 1-10, 1-18, 1-20,

1-25, 1-28, 5-1

evaluation ................................................. 4-18

independent living .................................... 8-20

Internet........................................................ 6-4

mental illness ......................... 1-10, 1-18, 1-25

outcome ................................. 1-25, 4-18, 8-20

program evaluation ................................... 1-10

psychiatric disabilities .............................. 1-18

psychosocial factors ................................. 1-18

research fellowships ................................. 8-20

self employment ..............................1-20, 1-21

service delivery ........................................ 1-28

severe disabilities ..................................... 1-28

supported employment ............................. 1-18

technology .................................................. 6-4

technology transfer ................................... 1-21

tests........................................................... 4-18

training...................................................... 8-20

utilization .................................................... 6-4

Wheelchair design .........................................3-12

Wheelchairs

mobility .................................................... 3-56

physical disabilities .................................. 3-56

posture ...................................................... 3-40

rehabilitation engineering ......................... 3-40

technology development .......................... 3-56

Women

abuse ................................................4-30, 5-10

aging ......................................................... 2-68

counseling ................................................. 4-33

curriculum ................................................ 4-30

disability management.............................. 2-90

emergent disabilities ................................. 5-10

employment .............................................. 1-13

ethnic groups ............................................ 2-68

health care ................................................ 2-68

health promotion....................................... 2-90
A-28 Subject Index

independent living .................................... 4-30

mental health ............................................ 4-33

personal assistance services ..................... 4-30

prevention ................................................. 4-30

self esteem ................................................ 4-33

spinal cord injuries ................................... 2-68

violence .................................................... 5-10

Work adjustment ............................................3-51

Work transition

autoimmune disorders .............................. 1-22

behavior disorders .................................... 1-27

computers ................................................. 3-59

education .................................................... 8-5

emergent disabilities ................................. 1-22

emotional disorders .................................. 1-27

employment ............................. 1-22, 1-27, 8-5

HIV ........................................................... 1-22

Internet...................................................... 1-29

research fellowships ................................... 8-5

students ..................................................... 1-29

training...................................................... 3-59

youth ......................................................... 1-27

Writing skills .................................................3-53

Youth

adults ........................................................ 4-29

arthritis...................................................... 2-83

behavior disorders .............................1-27, 4-2

behavioral support .................................... 4-29

brain injuries ............................................. 2-72

children ...................................... 2-83, 4-2, 5-3

cognition ................................................... 4-29

communication devices ............................ 3-44

communication disorders ......................... 2-79

community integration ......................4-2, 4-29

education .................................................. 2-79

emotional disorders .................................. 1-27

employment .....................................1-27, 4-23

epilepsy..................................................... 4-15

exercise ..................................................... 2-83

family life ..........................................4-12, 5-3

functional evaluation ................................ 4-29

independent living .................................... 4-23

Internet.............................................2-79, 3-44

intervention ............................................... 4-15

outcome .................................................... 4-15

parenting with a disability ........................ 4-12

parents ...................................................... 4-12

physical disabilities .................................. 2-79

policy .......................................................... 5-3

reading skills ............................................ 2-79

rehabilitation medicine ............................. 2-72

remote service delivery ............................ 3-44

rural services ...................................3-44, 4-15

SSI ............................................................ 4-23

technology ................................................ 3-44

work transition .......................................... 1-27
Grantees
A-30 Subject Index
Grantees B-1

AbleLink Technologies, Inc. ED-00-PO-3951 Colorado Springs, CO 4-35

AbleLink Technologies, Inc. ED-99-CO-0124 Colorado Springs, CO 4-36

Adaptive Environments Center, Inc. H133D60015 Boston, MA 7-2

Alabama Department of Rehabilitation

Services H224A30009 Montgomery, AL 9-11

Alaska Department of Labor and

Workforce Development H224A990001 Anchorage, AK 9-12

Alfred I. duPont Institute of the

Nemours Foundation H133G000117 Wilmington, DE 3-26

Alliant University Foundation H133B70016 San Diego, CA 1-2

American Research Corporation of

Virginia ED-00-PO-3586 Radford, VA 3-59

American Speech-Language-Hearing

Association H133G70055 Rockville, MD 2-74

Applied Resources Corporation/

Rehabilitation Technologies Division ED-99-PO-4636 Fairfield, NJ 3-52

Arizona University Affiliated Programs H133B980049 Flagstaff, AZ 5-1

Arkansas Rehabilitation Services H224A90020 Little Rock, AR 9-15

ATTAIN Inc. H224A00027 Washington, IN 9-27

Automated Functions, Inc. ED-00-PO-3782 Falls Church, VA 3-58

Baltimore Regional Burn Center H133A70025 Baltimore, MD 2-23

Barron Associates, Inc. ED-00-PO-3741 Charlottesville, VA 3-57

Baylor College of Medicine H133A980058 Houston, TX 2-20

Baylor College of Medicine H133A980073 Houston, TX 2-21

Baylor College of Medicine H133B40011 Houston, TX 4-10

Baylor College of Medicine H133G000226 Houston, TX 2-90

Baylor College of Medicine H133G990039 Houston, TX 4-33

Beneficial Designs, Inc. ED-98-CO-0046 Santa Cruz, CA 6-18

Beth Israel Medical Center H133G000120 New York, NY 2-84

Boston University H133B990005 Boston, MA 5-4

Boston University H133B990023 Boston, MA 4-5

Boston University H133G80124 Boston, MA 1-19

Boston University H133P70014 Boston, MA 8-17

Boston University H133P990003 Boston, MA 8-18

Boston University H133P990004 Boston, MA 8-19

Boston University/

Medical Center Hospital H133N000024 Boston, MA 2-33

California Dept. of Rehabilitation H224A30008 Sacramento, CA 9-16

California State University H133G80119 Los Angeles, CA 4-13

Center for an Accessible Society/

Exploding Myths, Inc. H133A980045 San Diego, CA 6-3

Center for Applied Science

and Engineering H133G990115 Wilmington, DE 3-25

Center for Applied Science

and Engineering H224A10005 Wilmington, DE 9-19

Center for Essential Management

Services H133G000195 Jericho, NY 1-22
B-2 Grantees

Center for Rehabilitation Technology H133G990048 West Haverstraw, NY 3-40

Cerebral Palsy Research Foundation of

Kansas H133G80077 Wichita, KS 6-14

CESSI ED-99-CO-0002 McLean, VA 7-12

Charlotte-Mecklenburg Hospital

Authority H133A980025 Charlotte, NC 2-55

Children’s Hospital H133A990019 Boston, MA 1-13

Children’s Hospital H133B980037 Boston, MA 1-5

Children’s Hospital H224A00036 Boston, MA 9-34

Children’s Hospital Medical Center H133G000134 Cincinnati, OH 4-28

Children’s Hospital Medical Center H133G990069 Cincinnati, OH 4-27

Cleveland State University H133G990036 Cleveland, OH 1-25

CNMI Governor’s Developmental

Disabilities Council H224A40007 Saipan, MP 9-48

Community Options, Inc. H133B980042 Washington, DC 1-3

Connecticut Department of Social

Services H224A20013 Hartford, CT 9-18

Conwal, Inc. ED-98-CO-0004 McLean, VA 8-27

Cornell University H133A70005 Ithaca, NY 1-14

Cornell University H133B980038 Ithaca, NY 1-8

Craig Hospital H133A980020 Englewood, CO 2-47

Craig Hospital H133G80011 Englewood, CO 2-66

Craig Hospital H133N000001 Englewood, CO 2-30

CyBotic Technologies, Inc. ED-00-PO-3857 Phillipsburg, NJ 3-53

DakotaLink H224A20019 Pierre, SD 9-56

Dartmouth College H133G000136 Lebanon, NH 2-82

Dartmouth Medical School H133G70031 Lebanon, NH 2-81

David E. Johnson, PhD H133F000050 Oklahoma City, OK 8-8

Delta 101 Technologies ED-00-PO-4009 Marysville, CA 3-46

DePaul University H133G000097 Chicago, IL 4-17

Devva Kasnitz, PhD H133F000044 Oakland, CA 8-3

Division of Vocational Rehabilitation H224A30014 Pago Pago, American Samoa 9-13

Duke University H133E980026 Durham, NC 3-10

Education Development Center, Inc. H133G000204 Newton, MA 3-36

Emory University H133A980028 Atlanta, GA 2-48

Eugene Research Institute H133G80095 Eugene, OR 3-43

FAAST, Inc. H224A000001 Tallahassee, FL 9-21

Foundation for Rehabilitation

Education and Research H133G990137 Rolling Meadows, IL 4-18

Future of Technology and Health, LC ED-00-PO-3587 Iowa City, IA 3-49

George Mason University H133G000142 Fairfax, VA 4-34

Georgetown University H133B001200 Washington, DC 2-6

Georgia Department of Human

Resources H224A10001 Atlanta, GA 9-22

Georgia Institute of Technology H133A000405 Atlanta, GA 3-15

Georgia Institute of Technology H224B990004 Atlanta, GA 6-19

Golden Ventures ED-00-PO-0219 Tampa, FL 1-32
Grantees B-3

Harlan Hahn, PhD H133F000030 Santa Monica, CA 8-4

Hawaii Department of Human Services,

Vocational Rehabilitation, and Services

for the Blind and Physically

Handicapped H224A10023 Honolulu, HI 9-24

Howard University H133A990020 Washington, DC 4-11

Howard University H133B000903 Washington, DC 2-7

IATP H224A90038 Springfield, IL 9-26

InfoUse ED-00-CO-3590 Berkeley, CA 1-29

InfoUse H224B990001 Berkeley, CA 9-1

Institute for Disabilities Research and

Training, Inc. (IDRT) ED-00-R-0013 Silver Spring, MD 3-50

Institute for Disabilities Research and

Training, Inc. (IDRT) ED-99-CO-0117 Silver Spring, MD 3-61

Institute for Learning and Development ED-99-CO-0125 Lexington, MA 4-37

The Institute for Rehabilitation and

Research (TIRR) H133A70015 Houston, TX 2-59

The Institute for Rehabilitation and

Research (TIRR) H133B990014 Houston, TX 2-12

The Institute for Rehabilitation and

Research (TIRR) H133D60012 Houston, TX 7-7

The Institute for Rehabilitation and

Research (TIRR) H133N000004 Houston, TX 2-41

The Institute for Rehabilitation and

Research (TIRR) H133N50007 Houston, TX 2-40

International Braille Research Center H133G80103 Baltimore, MD 3-32

Iowa Department for the Blind H133G990195 Des Moines, IA 3-30

Iowa University Affiliated Program H224A00028 Iowa City, IA 9-28

Jewish Employment and Vocational Service H133G80099 Laverock, PA 1-

26

John S. Trach, PhD H133F000070 Champaign, IL 8-5

KATS Network Coordinating Center H224A90002 Louisville, KY 9-30

Kessler Medical Rehabilitation

Research and Education Corp. H133N000022 West Orange, NJ 2-37

Kessler Medical Rehabilitation

Research and Education Corporation H133A980030 West Orange, NJ 2-54

Kessler Medical Rehabilitation

Research and Educational Corporation H133G000073 West Orange, NJ 3-38

KRA Corporation ED-99-CO-0057 Silver Spring, MD 6-7

LATAN H224A10028 Baton Rouge, LA 9-31

The Lexington School for the Deaf/

Center for the Deaf H133E980010 Jackson Heights, NY 3-9

The Lexington School for the Deaf/

Center for the Deaf H133G70122 Jackson Heights, NY 3-39

Lifease, Inc ED-00-PO-3935 New Brighton, MN 3-51

Lincoln Laboratories ED-00-PO-3781 College Ward, UT 3-56

Los Amigos Research and Education

Institute, Inc. (LAREI) H133B70011 Downey, CA 2-3
B-4 Grantees

Los Amigos Research and Education

Institute, Inc. (LAREI) H133B980024 Downey, CA 2-4

Los Amigos Research and Education

Institute, Inc. (LAREI) H133E003001 Downey, CA 3-1

Los Amigos Research and Education

Institute, Inc. (LAREI) H133G000004 Downey, CA 3-17

Los Amigos Research and Education

Institute, Inc. (LAREI) H133G60183 Downey, CA 3-16

Los Amigos Research and Education

Institute, Inc. (LAREI) H133N000029 Downey, CA 2-28

Louisiana State University Health

Sciences Center H133G990169 New Orleans, LA 4-20

Lucile Packard Children’s Hospitals

at Stanford H133G990087 Palo Alto, CA 3-20

Lucile Packard Children’s Hospitals

at Stanford H133G990103 Palo Alto, CA 3-19

M’Lisa Shelden H133F000023 Oklahoma City, OK 8-9

Maine CITE Coordinating Center H224A90047 Augusta, ME 9-32

Margaret E. O’Neil H133F000062 Philadelphia, PA 8-11

Maryland Governor’s Office for

Individuals with Disabilities H224A90019 Baltimore, MD 9-33

Massachusetts Institute of Technology H133A000500 Cambridge, MA 6-8

Matrix Research Institute H133B70007 Philadelphia, PA 1-10

Matrix Research Institute H133G80084 Philadelphia, PA 1-27

Mayo Medical Center H133A980036 Rochester, MN 2-51

Medicaid Working Group/

Boston University H133A990014 Boston, MA 2-16

Medical College of Wisconsin H133N50024 Milwaukee, WI 2-44

Medlantic Research Institute H133A990013 Washington, DC 2-14

Medlantic Research Institute H133G70072 Washington, DC 2-67

MedStar Research Institute H133B70003 Washington, DC 2-5

Medstar Research Institute H133E990007 Washington, DC 3-2

Meeting the Challenge, Inc. H133D60010 Colorado Springs, CO 7-9

Meeting the Challenge, Inc. H133G000221 Colorado Springs, CO 6-13

Meeting the Challenge, Inc. H133G980013 Colorado Springs, CO 6-12

Michigan Disability Rights Coalition H224A50009 East Lansing, MI 9-35

Mississippi Department of

Rehabilitation Services H224A00032 Jackson, MS 9-37

Mississippi Methodist Rehabilitation

Center H133A980035 Jackson, MS 2-52

Mississippi Methodist Rehabilitation

Center H133A980067 Jackson, MS 2-17

Mississippi State University H133B60001 Mississippi State, MS 1-6

Missouri Department of Labor and

Industrial Relations H224A30015 Independence, MO 9-38

MossRehab H133A000101 Philadelphia, PA 2-19

MossRehab H133A70033 Philadelphia, PA 2-58
Grantees B-5

Mount Sinai Medical School H133G990221 New York, NY 2-85

Mount Sinai School of Medicine H133B980013 New York, NY 4-8

Mount Sinai School of Medicine H133G990220 New York, NY 2-86

Mount Sinai School of Medicine H133N000027 New York, NY 2-38

Mount Sinai School of Medicine H133P000001 New York, NY 8-23

National Rehabilitation Hospital

Research Center H133G80031 Washington, DC 1-15

Nebraska Department of Education H224A90040 Lincoln, NE 9-40

Neighborhood Legal Services, Inc. H224B990002 Buffalo, NY 9-2

Nevada Rehabilitation Division H224A00037 Carson City, NV 9-41

New Jersey Protection and

Advocacy, Inc. H224A20007 Trenton, NJ 9-43

New Mexico State Department of

Education H224A00017 Santa Fe, NM 9-44

New York State Office of Advocate for

Persons with Disabilities H224A00041 Albany, NY 9-45

North Carolina Department of Health

and Human Services H224A00010 Raleigh, NC 9-46

North Carolina State University H133E990002 Raleigh, NC 3-11

North Carolina State University H133G000025 Raleigh, NC 6-16

North Carolina State University

School of Design H133G80060 Raleigh, NC 3-42

North Dakota Department of Human

Services H224A30003 Cavalier, ND 9-47

Northern Arizona University H224A40002 Phoenix, AZ 9-14

Northwestern University H133E980023 Chicago, IL 3-3

Northwestern University H133P80014 Chicago, IL 8-13

Northwestern University H133P990006 Chicago, IL 8-14

Ohio State University H133A980056 Columbus, OH 2-18

Ohio State University H133G80100 Columbus, OH 2-88

Ohio State University Research

Foundation H224A40001 Columbus, OH 9-49

Ohio Valley Center for Brain Injury

Prevention and Rehabilitation H133A70032 Columbus, OH 2-56

Oklahoma State University H224A50007 Stillwater, OK 9-50

ORC Macro H133G80048 Calverton, MD 6-15

ORC Macro HN96015001 Silver Spring, MD 6-6

Oregon Disabilities Commission H224A50002 Salem, OR 9-51

Oregon Health Sciences University H133A980027 Portland, OR 2-57

Oregon Health Sciences University H133B990019 Portland, OR 2-11

Oregon Health Sciences University H133G000154 Portland, OR 2-89

Oregon Health Sciences University H133G70154 Portland, OR 4-30

Orelena Hawks Puckett Institute H133G990132 Asheville, NC 3-41

Pacific Business Insights, Inc. (PBI) ED-00-PO-3953 Honaunau, HI 1-30

Patricia H. Manz, PhD H133F000056 Philadelphia, PA 8-12

Pennsylvania State University H133G80044 University Park, PA 3-44

Physicians Against Land Mines

Center for International Rehabilitation H133E980031 Chicago, IL 3-4
B-6 Grantees

Portland State University H133B990025 Portland, OR 4-9

Public Health Institute H133D60016 Berkeley, CA 7-10

Rehabilitation Engineering and

Assistive Technology Society of

North America (RESNA) H224B990005 Arlington, VA 9-3

Rehabilitation Institute of Chicago H133A60032 Chicago, IL 2-15

Rehabilitation Institute of Michigan H133N50006 Detroit, MI 2-35

Rehabilitation Institute Research

Corporation H133B980021 Chicago, IL 2-9

Rehabilitation Institute Research

Corporation H133G80052 Chicago, IL 3-28

Rehabilitation Institute Research

Corporation H133G80063 Chicago, IL 2-69

Rehabilitation Institute Research

Corporation H133G990046 Chicago, IL 2-70

Rehabilitation Institute Research

Corporation H133G990074 Chicago, IL 3-29

Research Solutions International (RSI) ED-00-PO-3955 Menomonie, WI 1-31

RESNA H224C000200 Arlington, VA 9-9

Rhoda M. Toperzer H133F000042 Conshohocken, PA 8-10

Rhode Island Department of Human

Services H224A30012 Providence, RI 9-54

Robert L. Burgdorf Jr. H133F000067 Silver Spring, MD 8-6

San Francisco State University H133G000024 San Francisco, CA 3-23

Santa Clara Valley Medical Center

(SCVMC) H133A70018 San Jose, CA 2-46

Santa Clara Valley Medical Center

(SCVMC) H133N000007 San Jose, CA 2-29

Sensory Technologies, Inc. ED-00-PO-3779 Providence, RI 3-55

Shepherd Center, Inc. H133G70111 Atlanta, GA 2-68

Shepherd Center, Inc. H133G990133 Atlanta, GA 3-27

Shepherd Center, Inc. H133N000005 Atlanta, GA 2-32

The Smith-Kettlewell Eye Research

Institute H133G990003 San Francisco, CA 3-22

The Smith-Kettlewell Eye Research

Institute H133G990049 San Francisco, CA 3-21

SMS Consulting ED-00-PO-3784 Ft. Collins, CO 3-48

SMS Consulting ED-00-PO-3843 Ft. Collins, CO 3-47

Southwest Educational Development

Laboratory H133A990008 Austin, TX 6-11

Spaulding Rehabilitation Hospital H133A980034 Boston, MA 2-49

SRI International H133G000047 Menlo Park, CA 3-18

State of Maryland H224C000009 Baltimore, MD 9-5

State of Minnesota Department of

Administration H224A90041 St. Paul, MN 9-36

State of Missouri H224C000015 Independence, MO 9-6

State University at Stony Brook H133G990058 Stony Brook, NY 2-87
Grantees B-7

State University of New York (SUNY)

at Albany H133G980104 Albany, NY 4-25

State University of New York (SUNY)

at Buffalo H133A990010 Buffalo, NY 6-9

State University of New York (SUNY)

at Buffalo H133E60006 Buffalo, NY 3-6

State University of New York (SUNY)

at Buffalo H133E980024 Buffalo, NY 3-7

State University of New York (SUNY)

at Buffalo H133E990005 Buffalo, NY 3-8

State University of New York (SUNY)

at Buffalo H133G70156 Buffalo, NY 2-83

State University of New York (SUNY)

at Buffalo H133G990086 Buffalo, NY 4-26

Syracuse University H133A990001 Syracuse, NY 6-10

Syracuse University H133G000028 Syracuse, NY 1-23

Temple University H224A20006 Philadelphia, PA 9-52

Temple University H224C000001 Philadelphia, PA 9-7

Texas Southern University H133A990024 Houston, TX 8-2

Theresa Louise-Bender Pape H133F000013 Chicago, IL 8-7

Thomas Jefferson University H133N000023 Philadelphia, PA 2-39

The Thresholds H133G90155 Chicago, IL 1-18

Through the Looking Glass H133A980001 Berkeley, CA 6-1

Through the Looking Glass H133G990130 Berkeley, CA 4-12

Touch Graphics ED-00-PO-3854 Brooklyn, NY 3-54

TransCen, Inc. H133D60006 Rockville, MD 7-4

TTAP H224A00003 Nashville, TN 9-57

Tulane University School of Medicine H133G70087 New Orleans, LA 2-72

United Cerebral Palsy Associations,

Inc. H133A980052 Washington, DC 6-4

United Cerebral Palsy Associations,

Inc. H133D60018 Atlanta, GA 7-5

United Cerebral Palsy Associations,

Inc. H133G80030 Washington, DC 1-16

United Cerebral Palsy Associations of

New Jersey H133D60013 Trenton, NJ 7-3

University Affiliated Center for

Developmental Disabilities H224A20011 Morgantown, WV 9-64

University Legal Services H224A30001 Washington, DC 9-20

University of Alabama/Birmingham H133A980010 Birmingham, AL 2-45

University of Alabama/Birmingham H133B980016 Birmingham, AL 2-1

University of Alabama/Birmingham H133G000072 Birmingham, AL 2-63

University of Alabama/Birmingham H133G80025 Birmingham, AL 2-62

University of Alabama/Birmingham H133N000016 Birmingham, AL 2-27

University of Arkansas H133B60002 Little Rock, AR 1-1

University of Arkansas H133G990188 Fayetteville, AR 5-6

University of Arkansas/Pine Bluff H133G000192 Pine Bluff, AR 2-64
B-8 Grantees

University of California/Berkeley H133G000083 Berkeley, CA 5-7

University of California/Davis H133B980008 Davis, CA 2-2

University of California/San Francisco H133B980045 San Francisco, CA 5-2

University of Colorado Health

Sciences Center H133A980055 Denver, CO 2-22

University of Colorado Health

Sciences Center H133G80121 Denver, CO 4-14

University of Colorado Health

Sciences Center H224A40014 Denver, CO 9-17

University of Delaware H133G990182 Wilmington, DE 3-24

University of Florida H133G990167 Gainsville, FL 5-8

University of Florida College of Heath

Professions H133G990500 Gainsville, FL 4-15

University of Georgia H133G80023 Athens, GA 1-17

University of Guam, UOG Station H224A40003 Mangilao, GU 9-23

University of Hawaii at Manoa H133B980043 Honolulu, HI 1-4

University of Idaho H224A20017 Moscow, ID 9-25

University of Illinois/Chicago H133A990017 Chicago, IL 5-5

University of Illinois/Chicago H133B000700 Chicago, IL 8-1

University of Illinois/Chicago H133B980046 Chicago, IL 2-8

University of Illinois/Chicago H133D60011 Chicago, IL 7-6

University of Illinois/Chicago H133G80074 Chicago, IL 7-1

University of Illinois/Chicago H133G990110 Chicago, IL 5-9

University of Illinois/Chicago H133G990143 Chicago, IL 2-71

University of Illinois/Chicago H133G990144 Chicago, IL 5-10

University of Illinois/Chicago H133P000005 Chicago, IL 8-15

University of Kansas H133A980048 Lawrence, KS 6-5

University of Kansas H133B980050 Lawrence, KS 5-3

University of Kansas H133P70004 Lawrence, KS 8-16

University of Kansas H224A30013 Parsons, KS 9-29

University of Kansas Center for

Research, Inc. H133B000500 Lawrence, KS 4-4

University of Kansas Center for

Research, Inc. H224C000011 Parsons, KS 9-4

University of Kansas Medical Center H133G000152 Kansas City, KS 4-19

University of Maryland, Baltimore

County H133G000068 Baltimore, MD 2-73

University of Massachusetts Medical

School H133G70079 Worcester, MA 2-75

University of Medicine and Dentistry

of New Jersey Medical School H133P70011 Newark, NJ 8-22

University of Miami H133N000017 Miami, FL 2-31

University of Michigan H133E980007 Ann Arbor, MI 3-5

University of Michigan H133G000038 Ann Arbor, MI 4-21

University of Michigan H133G000058 Ann Arbor, MI 2-76

University of Michigan H133G70120 Ann Arbor, MI 3-37

University of Michigan H133N000009 Ann Arbor, MI 2-34
Grantees B-9

University of Michigan H133P990014 Ann Arbor, MI 8-20

University of Minnesota H133B980047 Minneapolis, MN 4-6

University of Minnesota H133G000201 Minneapolis, MN 4-23

University of Minnesota H133G80041 Minneapolis, MN 2-77

University of Missouri H133N000012 Columbia, MO 2-36

University of Missouri/Columbia H133A980008 Columbia, MO 2-53

University of Missouri/Columbia H133B980022 Columbia, MO 2-10

University of Missouri/Columbia H133D60004 Columbia, MO 7-8

University of Missouri/Columbia H133G80033 Columbia, MO 2-78

University of Missouri/Columbia H133P80009 Columbia, MO 8-21

University of Montana H133B70017 Missoula, MT 1-7

University of Montana H133G000189 Missoula, MT 1-21

University of Montana H133G70064 Missoula, MT 1-20

University of Montana H224A10002 Missoula, MT 9-39

University of New Hampshire H133G000034 Durham, NH 4-24

University of New Hampshire H133G000150 Durham, NH 2-80

University of New Hampshire H133G990501 Durham, NH 2-79

University of New Hampshire

Technology Partnership H224A10015 Concord, NH 9-42

University of North Carolina H133G000132 Chapel Hill, NC 1-24

University of Oregon H133G80116 Eugene, OR 4-29

University of Pittsburgh H133E990001 Pittsburgh, PA 3-12

University of Pittsburgh H133P70013 Pittsburgh, PA 8-24

University of Puerto Rico H224A70001 San Juan, PR 9-53

University of South Carolina School

of Medicine H224A60001 Columbia, SC 9-55

University of South Florida H133B980005 Tampa, FL 4-2

University of South Florida H133B990022 Tampa, FL 4-3

University of South Florida H133G70013 Tampa, FL 4-16

University of Southern California H133G000062 Los Angeles, CA 2-65

University of Texas H133A70023 Dallas, TX 2-24

University of Texas at Austin H224A20012 Austin, TX 9-58

University of Texas Medical Branch H133A70019 Galveston, TX 2-25

University of Texas Medical Branch H133G990052 Galveston, TX 4-32

University of Texas Medical Branch H133P990001 Galveston, TX 8-25

University of the Virgin Islands H224A50005 St. Thomas, USVI 9-59

University of Washington H133A70014 Seattle, WA 2-26

University of Washington H133A980023 Seattle, WA 2-61

University of Washington H133B980017 Seattle, WA 2-13

University of Washington H133G70038 Seattle, WA 3-45

University of Washington H133N000003 Seattle, WA 2-43

University of Washington H224A30006 Seattle, WA 9-63

University of Wisconsin/Madison H133E980008 Madison, WI 3-13

University of Wisconsin/Madison H133E990006 Madison, WI 3-14

University of Wisconsin/Madison H133G70073 Madison, WI 6-17

University of Wisconsin/Stout H133B980040 Menomonie, WI 1-12

University of Wyoming H224A60002 Laramie, WY 9-66
B-10 Grantees

Utah State University H224A90051 Logan, UT 9-60

Utah State University H224C000004 Logan, UT 9-8

Vanderbilt University H133G70050 Nashville, TN 4-31

Vcom3D, Inc. ED-99-CO-0116 Orlando, FL 3-60

Vermont Department of Aging and

Disabilities H224A00023 Waterbury, VT 9-61

Virginia Commonwealth University H133A980026 Richmond, VA 2-60

Virginia Commonwealth University H133B980036 Richmond, VA 1-11

Virginia Commonwealth University H133G80135 Richmond, VA 1-28

Virginia Commonwealth University H133N000015 Richmond, VA 2-42

Virginia Commonwealth University H133P70003 Richmond, VA 8-26

Virginia Department of Rehabilitative

Services H224A00009 Richmond, VA 9-62

Virginia Department of Rehabilitative

Services H224C000003 Richmond, VA 9-10

Washington State Governor’s

Committee on Disability Issues and

Employment H133D60009 Olympia, WA 7-11

Wayne State University H133G990219 Detroit, MI 4-22

Wayne State University and

Rehabilitation Institute of Michigan H133A70021 Detroit, MI 2-50

The Western New York Independent

Living Project, Inc. H133B000002 Buffalo, NY 4-7

WGBH Educational Foundation H133G000109 Boston, MA 3-35

WGBH Educational Foundation H133G80050 Boston, MA 3-33

WGBH Educational Foundation H133G990105 Boston, MA 3-34

Wichita State University H133G000188 Wichita, KS 3-31

Wisconsin Assistive Technology

Program H224A00013 Madison, WI 9-65

World Institute on Disability H133A990006 Oakland, CA 6-2

World Institute on Disability H133B70008 Oakland, CA 4-1

Wright State University H133B70018 Dayton, OH 1-9
Projects by State

Projects by State C-1

Alabama

Alabama Statewide Technology Access

and Response Project (STAR) System for

Alabamians with Disabilities ..................... 9-11

Amantadine to Improve Neurorecovery in

TBI .............................................................. 2-62

Rehabilitation Research and Training

Center on Secondary Conditions of Spinal

Cord Injury: Promoting General Health,

Well-Being, and Community Integration

Through Home-Based, Self-Directed Care .. 2-1

Traumatic Brain Injury Care System.......... 2-45

UAB Model Spinal Cord Injury Care

System ........................................................ 2-27

Use of Propranolol to Manage Behavioral

Dysfunction and Agitation in Persons with

Postacute Brain Injury ................................ 2-63

Alaska

Assistive Technologies of Alaska............... 9-12

American Samoa

American Samoa Assistive Technology

Service (ASATS) Project ............................ 9-13

Arizona

American Indian Rehabilitation Research

and Training Center ...................................... 5-1

Arizona Technology Access Program

(AzTAP)...................................................... 9-14

Arkansas

Arkansas Increasing Capabilities Access

Network (ICAN) ......................................... 9-15

Developing a Rehabilitation Service

Delivery Model for Minority Farmers with

Disabilities.................................................. 2-64

The Empowerment Project: Promoting

Equality for People with Disabilities

Through Electoral Participation ................... 5-6

Rehabilitation Research and Training

Center for Persons Who Are Deaf or Hard

of Hearing ..................................................... 1-1

California

Aging with Spinal Cord Injury (SCI) ........... 2-3

Assistive Technology Act Data Collection

Project ........................................................... 9-1

California Assistive Technology System

(CATS) ........................................................ 9-16

A Comprehensive System of Care for

Traumatic Brain Injury ............................... 2-46

Daily Living Context and Pressure Sores in

Consumers with Spinal Cord Injury ........... 2-65

Development of a Transitional OrthoTherapeutic Walker (TOTWalker) for

Preschool Children with Physical

Disabilities.................................................. 3-19

Disability and Rehabilitation Research

Project to Disseminate Independent Living

Research Information Through the Mass

Media to Persons with Disability ................. 6-3

Disability Rights and the Independent

Living Movement: The Formative Years

Nationwide ................................................... 5-7

Disability Statistics Rehabilitation

Research and Training Center ...................... 5-2

The Effect of Ankle-Foot Orthotic Design

on Hemiplegic Gait .................................... 3-17

Health and Disability: Pursuing Conceptual

Clarity in Rehabilitation Measures............... 8-4

Ideas for the New Millennium...................... 6-2

Internet-Based Presentation of Role

Models for Youth in Transition from

School to Work ........................................... 1-29

The Learning and Transfer of Prosthetic

Control ........................................................ 3-23

A Life Course Approach to Peerage and

Leadership in the Disability Rights

Movement ..................................................... 8-3

Model Spinal Cord Injury System .............. 2-29

Multi-Lingual Web Tutorial ....................... 3-46

National Resource Center for Parents with

Disabilities.................................................... 6-1

Optimizing Assistive Technology Service

with Video Teleconferencing...................... 3-20

Optimizing the Conditions for Reading

with the Periphery of the Visual Field ........ 3-22

Pacific Disability and Business Technical

Assistance Center - Region IX ................... 7-10

Parents with Disabilities and Their

Adolescent Children ................................... 4-12
C-2 Projects by State

Powered Mobility and Young Children

with Disabilities: A Multicenter Trial to

Determine the Cognitive and Coping

Factors That Predict Wheelchair Skill

Level ........................................................... 3-16

A Refreshable Braille/Tactile Graphics

Display for Human-Computer Interaction . 3-21

Regional Spinal Cord Injury Care System

of Southern California ................................ 2-28

Rehabilitation Research and Training

Center in Neuromuscular Diseases............... 2-2

Rehabilitation Research and Training

Center on Aging with a Disability................ 2-4

Rehabilitation Research and Training

Center on Personal Assistance Services

(PAS)............................................................. 4-1

The Relationship Between Early

Experiences and Development in Young

Children with Severe Visual Impairments:

A Cross-Cultural Perspective ..................... 4-13

Research and Training Center For Persons

Who Are Hard of Hearing or Late

Deafened ....................................................... 1-2

Robust, Low-Cost, Refreshable Braille

Display ........................................................ 3-18

Technologies for Children with Orthopedic

Disabilities.................................................... 3-1

Trails Web Site with Universal Access

Information ................................................. 6-18

Colorado

Colorado Assistive Technology Project

(CATP) ........................................................ 9-17

Disability Law Knowledge Management

System: A One-Stop Clearinghouse for

Disability Information ................................ 6-13

Evaluation of Voucher Alternatives for

Early Intervention Developmental

Disability Services ...................................... 4-14

Marketing Health Promotion, Wellness,

and Risk Information to Spinal Cord Injury

Survivors in the Community ...................... 2-66

Model System for Burn Injury

Rehabilitation ............................................. 2-22

NutriNet: An Internet Based Self-Directed

Multimedia Nutritional Planning and

Grocery Shopping System for Individuals

with Mental Retardation ............................. 4-35

Personal Scanner: A Hand-held Device

That Speaks the Information Displayed on

Common Office Equipment ....................... 3-47

QwikClick - An Intelligent Scanning

Keyboard that Maximizes the Capability

of Single-Switch Users ............................... 3-48

Rocky Mountain Disability and Business

Technical Assistance Center - Region VIII .. 7-9

Rocky Mountain Regional Brain Injury

System ........................................................ 2-47

The Rocky Mountain Regional Spinal

Injury System.............................................. 2-30

Total Access: An Innovative System to

Provide Destination Accessibility

Information for Children and Adults with

Disabilities.................................................. 6-12

Visual Assistant: A Portable Multimedia

Training System for Community-Based

Skill Development for Individuals with

Mental Retardation ..................................... 4-36

Connecticut

Connecticut Assistive Technology

Project ......................................................... 9-18

Delaware

Delaware Assistive Technology Initiative

(DATI) ........................................................ 9-19

Personalized Synthetic Speech Using

ModelTalker: Development and

Evaluation ................................................... 3-24

Specifying the Facilitative Effects of

Animation on the Understanding of Action

Word Representatives ................................. 3-25

An Upper Limb Orthosis for People with

Muscular Dystrophy ................................... 3-26

District of Columbia

Access to Rehabilitation and

Empowerment Opportunities for Minority

Persons with Disabilities .............................. 2-7

Development of an Individualized

Marketing Strategy for Job Development

for People with Severe Disabilities ............ 1-16

Leadership Development - A New

Generation of Effective Leadership ........... 4-11
Projects by State C-3

Managed Health Care for Individuals with

Disabilities.................................................... 2-5

National Rehabilitation Research and

Training Center for Children with

Disabilities with Special Health Care

Needs ............................................................ 2-6

Policy Barriers for People with Long Term

Mental Illness Who Want to Work ............. 1-15

Rehabilitation Engineering Research

Center on Telerehabilitation ......................... 3-2

Rehabilitation Research and Training

Center on Workforce Investment and

Employment Policy for Persons with

Disabilities.................................................... 1-3

Rehabilitation Services for Persons with

Emergent Disabilities: Medical

Rehabilitation Services for Persons with

Disabilities.................................................. 2-14

TECH CONNECTIONS: Improving the

Utilization of Existing and Emerging

Rehabilitation Technology in the State

Vocational Rehabilitation Program .............. 6-4

Toward a Risk Adjustment Methodology

for People with Disabilities ........................ 2-67

University Legal Services AT Program for

the District of Columbia ............................. 9-20

Florida

AbilityForum.com ...................................... 1-32

Automated PC-Based Speech-to-SignLanguage Interpreter .................................. 3-60

Equiprecise Measurement for ICIDH-2

Classification of Activity: An Innovative

Solution for Evaluating the Worldwide

Incidence and Prevalence of Disability ........ 5-8

Florida Alliance for Assistive Service and

Technology (FAAST), Inc. ......................... 9-21

Home-Based Video-Counseling for Rural

At-Risk Adolescents with Epilepsy and

Their Parents: An Accessibility and

Outcome Analysis ...................................... 4-15

Integrated Services and Parent Partnerships

in Schools: Meeting the Needs of Children

with Emotional and Behavioral Disabilities

and Their Families ...................................... 4-16

Rehabilitation Research and Training

Center for Children’s Mental Health ............ 4-3

Rehabilitation Research and Training

Center on Positive Behavioral Support ........ 4-2

South Florida Regional Spinal Cord Injury

Model System ............................................. 2-31

Georgia

Aging and Adjustment After Spinal Cord

Injury: A Twenty-Five-Year Longitudinal

Study ........................................................... 2-68

assistivetech.net (formerly Global

Assistive Technology Explorer (GATE)) ... 6-19

Development and Dissemination of a

Questionnaire and Method to Evaluate

Customer Satisfaction with Rehabilitation

.................................................................... 1-17

Georgia Model Brain Injury System

(GAMBIS) .................................................. 2-48

Georgia Regional Spinal Cord Injury Care

System ........................................................ 2-32

Georgia Tools for Life ................................ 9-22

Information Technology Technical

Assistance and Training Center .................. 3-15

Southeast Disability and Business Technical

Assistance Center - Region IV ..................... 7-5

Telerehabilitation to Support Assistive

Technology ................................................. 3-27

Guam

Guam System for Assistive Technology

(GSAT)........................................................ 9-23

Hawaii

Assistive Technology Resource Centers of

Hawaii (ATRC) ........................................... 9-24

Computer-Based Multimedia Interactive

“E-Entrepreneur” Training for Individuals

with Disabilities .......................................... 1-30

National Center for the Study of

Postsecondary Educational Supports: A

Rehabilitation Research and Training

Center ........................................................... 1-4

Idaho

Idaho Assistive Technology Project ........... 9-25
C-4 Projects by State

Illinois

Advanced Rehabilitation Research

Training ...................................................... 8-15

Advanced Rehabilitation Research

Training Project in Rehabilitation Services

Research ..................................................... 8-13

The Assessment of Consciousness

Following a Traumatic Brain Injury

Among Veterans and Non-Veterans -

Phase II ......................................................... 8-7

Center on Emergent Disability: A National

Study on the Changing Impact of Major

Demographic, Health, Social, and

Economic Trends on the Manifestation of

Disability ...................................................... 5-5

Comparison of Two Employment Models

for Consumers with Severe Mental Illness

.................................................................... 1-18

Determining the Effectiveness of a

Capacity-Building Program for Individuals

with Chronic Fatigue Syndrome................. 4-17

Developing the Capacity of Minority

Communities to Promote the

Implementation of the Americans with

Disabilities Act ............................................. 7-1

Development of a Rehabilitator for Arm

Therapy After Brain Injury......................... 3-28

The Development of a Valid System for

Measuring Rehabilitation Service

Outcomes .................................................... 4-18

Enhancement of Upper Limb Functional

Recovery in Stroke Using a ComputerAssisted Training Paradigm ....................... 2-69

Exercise and Recreation for Individuals

with a Disability: Assessment and

Intervention ................................................ 2-15

Great Lakes Disability and Business

Technical Assistance Center - Region V ...... 7-6

Illinois Assistive Technology Project ......... 9-26

A Multi-Level Analysis of the Relationship

Between Domestic Violence and Disability

.................................................................... 5-10

Neuromuscular Reorganization to Improve

the Control of Artificial Limbs................... 3-29

Re-Defining Wholeness: Formulating A

Minority Group Model of Disability

Identity Development ................................... 5-9

Rehabilitation Engineering Research

Center: Improved Technology Access for

Land Mine Survivors .................................... 3-4

Rehabilitation Engineering Research

Center on Prosthetics and Orthotics ............. 3-3

Rehabilitation Research and Training

Center on Aging with Developmental

Disabilities.................................................... 2-8

Rehabilitation Research and Training

Center on Stroke Rehabilitation ................... 2-9

Rehabilitation Science for Engineers and

Basic Scientists: An Advanced Training

Program ...................................................... 8-14

Secondary Prevention Trial of Exercise

and Diet for Improvement of Physical

Fitness, Independence, and Overall Health

in Adult Paraplegics ................................... 2-71

The SPIRATE Project (Spinal Injury Risk

Assessment for ThromboEmbolism) .......... 2-70

Transitioning to Employment Through

Secondary Education Job Development,

Placement, and Negotiation of Supports ...... 8-5

UIC National Research and Training

Center on Psychiatric Disability ................... 8-1

Indiana

ATTAIN Inc. (Assistive Technology

Through Action in Indiana) ........................ 9-27

Iowa

Gesture Recognition System for Personal

Computing Applications............................. 3-49

Iowa Program for Assistive Technology .... 9-28

Training Material for Blind Computer

Users ........................................................... 3-30

Kansas

Assistive Technology for Kansans

Alternative Financing Program .................... 9-4

Assistive Technology for Kansans

Project ......................................................... 9-29

Improving Research Information

Dissemination and Utilization to Promote

Independent Living (The RIIL Project)........ 6-5

Independent Living for People with

Psychiatric Disabilities: Using Contextual

Cues to Remove Environmental Barriers ... 4-19
Projects by State C-5

The Influence of Real-Time Frequency

Transposition on the Recognition and

Understanding of Speech by Adults Who

Are Hearing Impaired ................................. 3-31

A Knowledge Dissemination Project to

Enhance the Transfer of Rehabilitation

Engineering and Assistive Technologies to

People with Disabilities .............................. 6-14

Rehabilitation Research and Training

Center on Full Participation in Independent

Living ........................................................... 4-4

Rehabilitation Research and Training

Center on Policies Affecting Families of

Children with Disabilities............................. 5-3

Rehabilitation Research Training Program

.................................................................... 8-16

Kentucky

Kentucky Assistive Technology Services

(KATS) Network......................................... 9-30

Louisiana

Louisiana Assistive Technology Access

Network (LATAN) ...................................... 9-31

Louisiana’s Self-Determination Research

Project ......................................................... 4-20

Mild Traumatic Brain Injury in High

School Football........................................... 2-72

Maine

Maine Consumer Information and

Technology Training Exchange (Maine

CITE) .......................................................... 9-32

Maryland

ABLEDATA Database Program ................... 6-6

The Assistive Technology Guaranteed Loan

Program: Partnerships for Maxium AT

Access ........................................................... 9-5

A Computer Program to Emulate TTY

Communication .......................................... 3-61

Consumers’ Participation in Nursing Home

Decisionmaking Preferences and

Perceptions ................................................. 2-73

Development and Commercial Transfer of a

Tactile Image Printer (TIP)......................... 3-32

Development of a Consumer-Responsive

Resource on Assistive Technology

Information ................................................. 6-15

Fundamental Disability Concepts and the

Courts ........................................................... 8-6

Johns Hopkins University Burn Injury

Rehabilitation Model System ..................... 2-23

Maryland Technology Assistance Program

(MD TAP) ................................................... 9-33

Measuring Functional Communication:

Multicultural and International

Applications................................................ 2-74

Mid-Atlantic Disability and Business

Technical Assistance Center - Region III ..... 7-4

National Rehabilitation Information

Center (NARIC) ........................................... 6-7

Testing Vision in Young Deaf Children ..... 3-50

Massachusetts

Access Solutions for Rich Media: Tools,

Pathways, and Resources............................ 3-35

Access to Convergent Media ...................... 3-34

Access to Health Care Services for Persons

with Disabilities: Defining the Barriers and

Strategies for Change ................................. 2-16

Closed Captioning and Audio Description:

Development and Testing for Access to

Digital Television ....................................... 3-33

The Development, Implementation, and

Evaluation of a Research Training Program

in Psychiatric Rehabilitation ...................... 8-17

Exploratory Study of the Relationship

Between Sustained Employment and

Psychosocial Adjustment of People with

Psychiatric Disabilities ............................... 1-19

An Integrated Rehabilitation Engineering

Research Training Program ........................ 8-18

Massachusetts Assistive Technology

Partnership .................................................. 9-34

New England Disability and Business

Technical Assistance Center - Region I ....... 7-2

The New England Regional Spinal Cord

Injury Center............................................... 2-33

The Parenting Options Project: A

Development Project for Parents with

Psychiatric Disabilities ............................... 2-75
C-6 Projects by State

Rehabilitation Health Services Research

Fellowship Program.................................... 8-19

Rehabilitation Research and Training

Center in Rehabilitation of Persons with

Long Term Mental Illness ............................ 4-5

Rehabilitation Research and Training

Center on Measuring Rehabilitation

Outcomes ...................................................... 5-4

Rehabilitation Research and Training

Center on State Systems and Employment .. 1-5

Strategies for Test Success: A CD-ROM

for Students with Learning Disabilities ...... 4-37

Traumatic Brain Injury Model System ....... 2-49

Web Accessibility Initiative - Phase II ......... 6-8

Word for Word: Developing an Enhanced

Tool for Individuals with Disabilities......... 3-36

Working It Out Together: Women with

Disabilities and Employment ..................... 1-13

Michigan

Direct Brain Interface for Control of

Assistance Technology ............................... 3-37

Identifying Social Integration Needs

During Transition to Adulthood Following

Traumatic Brain Injury ............................... 4-21

Michigan AT Project................................... 9-35

Quality of Life for Persons with a Spinal

Cord Injury: A Qualitative Longitudinal

Study ........................................................... 4-22

Rehabilitation Engineering Research

Center on Ergonomic Solutions for

Employment ................................................. 3-5

Repetitive Intensive Training Exercise:

Effect on Upper Extremity Motor Function

in Spasticity ................................................ 2-76

Southeastern Michigan Spinal Cord Injury

System ........................................................ 2-35

Southeastern Michigan Traumatic Brain

Injury System.............................................. 2-50

The UMHS/MSU/AACIL Rehabilitation

Research Training Program ........................ 8-20

University of Michigan Model Spinal

Cord Injury Care System ............................ 2-34

Minnesota

A Computerized Worker-Job Assessment to

Access Assistive Technology Information

for the Workplace ....................................... 3-51

Effect of Motor Learning Procedures on

Brain Reorganization in Subjects with

Stroke .......................................................... 2-77

Minnesota System of Technology to

Achieve Results (STAR) Program.............. 9-36

Model Brain Injury System ........................ 2-51

National Study on the Impact of SSI

Redetermination of 18-Year-Old Youth

with Disabilities on Employment,

Independent Living, and Community

Participation Outcomes .............................. 4-23

Rehabilitation Research and Training

Center for Community Integration of

Persons with Mental Retardation ................. 4-6

Mississippi

Collaborative Study of Impaired SelfAwareness After Traumatic Brain Injury ... 2-17

Mississippi Project START (Success

Through Assistive/Rehabilitative

Technology) ................................................ 9-37

Rehabilitation Research and Training

Center on Blindness and Low Vision ........... 1-6

Traumatic Brain Injury (TBI) Model

System of Mississippi (TBIMSM) ............. 2-52

Missouri

Assistive Techology Financial Loan

Program - $how-Me Loans ........................... 9-6

Creating Permanent Behavioral Health

Access for Rural Missourians with TBI:

Teleconferencing Application for Improved

Services....................................................... 2-78

Great Plains Disability and Business Technical

Assistance Center - Region VII .................... 7-8

Missouri Arthritis Rehabilitation Research

and Training Center (MARRTC)................ 2-10

Missouri Assistive Technology Project ...... 9-38

Missouri Model Spinal Cord Injury

System ........................................................ 2-36

Missouri Model Traumatic Brain Injury

System (MOMBIS)..................................... 2-53

Research Enrichment Program for

Physiatrists .................................................. 8-21
Projects by State C-7

Montana

MonTECH .................................................. 9-39

Rehabilitation Research and Training

Center on Rural Rehabilitation Services ...... 1-7

The Self-Employment Experience:

Learning About Entrepreneurs with

Disabilities to Build Models for Improving

Self-Employment Outcomes ...................... 1-20

Self-Employment Technology Transfer

(SETT) ........................................................ 1-21

Nebraska

Nebraska Assistive Technology Partnership

.................................................................... 9-40

Nevada

Nevada Assistive Technology

Collaborative .............................................. 9-41

New Hampshire

Catecholaminergic Modulation of Working

Memory in Traumatic Brain Injury: An

fMRI Study of the Effects of D2

Dopaminergic and Alpha-2 Adrenergic

Agonistics ................................................... 2-82

Developing and Evaluating an Interactive

Tool to Support Literacy Learning in

Adolescents with Severe Speech and

Physical Impairments ................................. 2-79

Hippocampal Dysfunction Following TBI:

A Functional and Volumetric MRI Study of

Memory Loss and Recovery....................... 2-81

New Hampshire Technology Partnership

Project ......................................................... 9-42

Project PATH (Promoting Access,

Transition, and Health) ............................... 2-80

Survey of Home Ownership Nationwide ... 4-24

New Jersey

Advanced Multidisciplinary Training

Program in Rehabilitation Outcomes

Research ..................................................... 8-22

A Modular Desktop Manipulator................ 3-52

New Jersey Technology Assistive Resource

Program (TARP) ......................................... 9-43

Northern New Jersey Spinal Cord Injury

System ........................................................ 2-37

Northern New Jersey Traumatic Brain

Injury System (NNJTBIS)/NIDRR TBI

Model Systems National Database ............. 2-54

The Use of Virtual Reality Technology for

Assessment of Driving Skills Following

Acquired Brain Injury ................................ 3-38

Writing Rehabilitation System with

Dynamic Analysis Tools............................. 3-53

New Mexico

New Mexico Technology Assistance

Program (NMTAP) ..................................... 9-44

New York

Acupuncture as an Adjunctive Treatment

in Stroke Rehabilitation .............................. 2-84

Advanced Rehabilitation Research

Training ...................................................... 8-23

Center for International Rehabilitation

Research Information and Exchange

(CIRRIE) ...................................................... 6-9

Community Reintegration and Quality of

Life Following Traumatic Brain Injury ...... 2-85

Conception, Design, and Implementation

of an Audio/Tactile Atlas of the World for

Use by Students Who are Blind or Visually

Impaired and Others ................................... 3-54

A Direction Finding, Beam Forming

(DF-BF) Conference Microphone System

.................................................................... 3-39

Effectiveness of a System that Includes

Computer-Based Monitoring in Promoting

Care Among Older Persons with Physical

Disabilities.................................................. 4-26

A Four-Year Research and Demonstration

Project to Address Ways to Improve the

Employment Practices Covered by Title I

of the Americans with Disabilities Act

 (ADA) ........................................................ 1-14

Functional, Physiologic, and Immunologic

Outcomes of Quantitative Progressive

Exercise Rehabilitation of the Lower

Extremities in Juvenile Arthritis: A Pilot

Study ........................................................... 2-83

The Impact of Managed Care on

Rehabilitation Services and Outcomes for

Persons with Spinal Cord Injury................. 2-86
C-8 Projects by State

Interventions to Improve Memory in

Patients with Multiple Sclerosis ................. 2-87

Measuring Employer Openness to Hiring

People with Disabilities: Development of

Expanded Labor Market Survey................. 1-23

Medication Management and Successful

Work Transition in Persons with HIV/

AIDS ........................................................... 1-22

Mount Sinai Spinal Cord Injury Model

System ........................................................ 2-38

National Assistive Technology (AT)

Advocacy Project ......................................... 9-2

National Resource Center on Supported

Living and Choice for People with Mental

Retardation and Developmental

Disabilities.................................................. 6-10

New York State Technology-Related

Assistance of Individuals with Disabilities

(TRAID) Project ......................................... 9-45

Northeast Disability and Business Technical

Assistance Center - Region II ....................... 7-3

Optimizing Posture, Trunk Control, and

Reach of Wheelchair Users ........................ 3-40

Preventing Severe Behavior Problems ....... 4-25

Rehabilitation Engineering and Research

Center (RERC) on Universal Design and

the Built Environment at Buffalo ................. 3-8

Rehabilitation Engineering Research

Center on Assistive Technology for Older

Persons with Disabilities .............................. 3-6

Rehabilitation Engineering Research

Center on Hearing Enhancement and

Assistive Devices.......................................... 3-9

Rehabilitation Engineering Research

Center on Technology Transfer .................... 3-7

Rehabilitation Research and Training

Center for Economic Research on

Employment Policy for Persons with

Disabilities.................................................... 1-8

Rehabilitation Research and Training

Center on Independent Living Management

(RRTC-ILM)................................................. 4-7

Rehabilitation Research and Training

Center on the Community Integration of

Individuals with Traumatic Brain Injury ...... 4-8

North Carolina

The Carolinas Traumatic Brain Injury

Rehabilitation and Research System

(CTBIRRS) ................................................. 2-55

Exploring Universal Design: Developing

and Disseminating Universal Design

Education Material Online ......................... 6-16

Geographic Information System

Community Resource Mapping.................. 3-41

North Carolina Assistive Technology

Project ......................................................... 9-46

Promoting the Practice of Universal

Design ......................................................... 3-42

Rehabilitation Engineering Research

Center on Communication Enhancement... 3-10

Rehabilitation Engineering Research

Center (RERC) on Universal Design and

the Built Environment ................................ 3-11

Resolving ADA Employment

Discrimination Charges .............................. 1-24

North Dakota

North Dakota Interagency Program for

Assistive Technology (IPAT) ...................... 9-47

Northern Mariana Islands

Commonwealth of the Northern Mariana

Islands (CNMI) Assistive Technology

Project - System of Technology-Related

Assistance for Individuals with Disabilities

(STRAID) ................................................... 9-48

Ohio

Assistive Technology of Ohio (AT-OHIO)

.................................................................... 9-49

A Double-Blind, Placebo-Controlled Trial

Exploring the Efficacy of Nortriptyline and

Amantadine in the Management of PostTraumatic Agitation ................................... 2-18

A Family Intervention Following

Traumatic Brain Injury in Children ............ 4-27

Neuropsychological Functioning and

Psychosocial Adjustment in Adolescents

with Spina Bifida and NLD ........................ 4-28

Ohio Regional Traumatic Brain Injury

Model System ............................................. 2-56
Projects by State C-9

The Physiologic Basis of Functional

Electrical Stimulation on Muscle Atrophy

in Acute Spinal Cord Injury ....................... 2-88

Rehabilitation Research and Training

Center on Drugs and Disability .................... 1-9

Variables Associated with Vocational

Success Among Persons with Severe

Mental Illness: An Empirical Study ........... 1-25

Oklahoma

Evidence for Clinically-Useful Tests and

Test Clusters of Lumbar, Sacroiliac, and

Hip Joint Movement Impairment in

Patients Categorized by Mechanical Low

Back Pain Status, Low Back Disability,

and General Health Status ............................ 8-8

Oklahoma ABLE Tech ............................... 9-50

Project POP: Placement Options for

Preschoolers with Developmental

Disabilities and Delays ................................. 8-9

Oregon

Accessibility of Personal Computers for

Adults with Significant Cognitive

Disabilities: Development and FieldTesting of Assistive Software for Personal

Management ............................................... 3-43

Building Comprehensive Behavioral

Support: Bridging the Gap ......................... 4-29

Oregon Model Traumatic Brain Injury

System ........................................................ 2-57

Oregon Technology Access for Life Needs

(TALN) ....................................................... 9-51

Rehabilitation Research and Training

Center on Health and Wellness for Persons

with Long-Term Disabilities ...................... 2-11

Rehabilitation Research and Training

Center to Improve Services for Children

with Serious Emotional and Behavioral

Disabilities and Their Families .................... 4-9

Traumatic Brain Injury Rehabilitation:

The Argentina Project ................................ 2-89

Women’s Personal Assistance Services

(PAS) Abuse Research Project ................... 4-30

Pennsylvania

Access to Rehabilitation Services and

Technology for Children with Special

Health Care Needs: Findings and

Recommendations for Families and

Providers ..................................................... 8-11

Alternative Financing Program .................... 9-7

Demonstration of a Model Spinal Cord

Injury System Center .................................. 2-39

Functional Assessment in Rehabilitation

Software Conversion (FAIR/SC) ................ 1-26

The Mentor Project: Exemplary Practices

for Developing Supportive Mentor-Protégè

Relationships via the Internet for People

with Significant Physical and Speech

Disabilities.................................................. 3-44

A Model System of Brain Injury Care in the

Philadelphia Region ................................... 2-58

The MRI/Penn Training Center on

Vocational Rehabilitation Services for

Persons with Long-Term Mental Illness..... 1-10

Pennsylvania’s Initiative on Assistive

Technology (PIAT) ..................................... 9-52

Rehabilitation Engineering Research

Center on Wheeled Mobility ...................... 3-12

Rehabilitative Impact of Integrated

Spiritual Care On An Inpatient Oncology

Unit ............................................................. 8-10

Research Training in Rehabilitation

Science with Special Emphasis on

Disability Studies ....................................... 8-24

Testing the Effectiveness of School-toWork Transition Services for Youth with

Serious Emotional Disturbances ................ 1-27

Treatment of Shoulder Dysfunction in

Polio Survivors and Elderly Adults with

Lower Extremity Impairment ..................... 2-19

An Urban Response to IDEA ‘97: The

Development and Examination of a

Community Partnership Approach to

Support Paraprofessionals in Urban

Schools ....................................................... 8-12

Puerto Rico

Puerto Rico Assistive Technology Project . 9-53
C-10 Projects by State

Rhode Island

Development of Noise-based Devices That

Enhance Somatosensory Function.............. 3-55

Rhode Island Assistive Technology Access

Partnership (ATAP)..................................... 9-54

South Carolina

South Carolina Assistive Technology

Program (SCATP) ....................................... 9-55

South Dakota

South Dakota Assistive Technology Project

(DakotaLink) .............................................. 9-56

Tennessee

PALS: Postsecondary Adjustment,

Literacy, and Socialization for Secondary

Students with Mild/Moderate Disabilities

.................................................................... 4-31

Tennessee Technology Access Project

(TTAP) ........................................................ 9-57

Texas

Center for Minority Training and Capacity

Building for Disabilities Research ............... 8-2

Effects of Methylphenidate on Working

Memory and Cerebral Glucose Metabolism

in Persons with Severe Traumatic Brain

Injury .......................................................... 2-21

Health Promotion for Women Aging with

Disability .................................................... 2-90

Impact of Family Environment on Patient

and Family Outcome After TBI: A MultiCenter Study ............................................... 2-20

Interdisciplinary Rehabilitation Research

Training Program........................................ 8-25

Model Spinal Cord Injury System .............. 2-40

Model System for Burn Injury

Rehabilitation ............................................. 2-24

National Center for the Dissemination of

Disability Research (NCDDR) ................... 6-11

Pediatric Burn Injury Rehabilitation Model

System ........................................................ 2-25

Rehabilitation Research and Training

Center in Community Integration for

Individuals with Spinal Cord Injury ........... 4-10

Rehabilitation Research and Training

Center on Rehabilitation Interventions

Following Traumatic Brain Injury ............. 2-12

Self-Esteem and Women with Physical

Disabilities.................................................. 4-33

Southwest Disability and Business

Technical Assistance Center - Region VI..... 7-7

Texas Assistive Technology Partnership .... 9-58

Texas Model Spinal Cord Injury System.... 2-41

The Transition of Pediatric Burn Survivors

into Adulthood ............................................ 4-32

Traumatic Brain Injury Model System of

TIRR ........................................................... 2-59

U.S. Virgin Islands

U.S. Virgin Islands Technology-Related

Assistance for Individuals with Disabilities

(TRAID) ..................................................... 9-59

Utah

Alternative Financing Program .................... 9-8

Omnidirectional Wheelchair to Increase

the Mobility of Persons with Physical

Disabilities.................................................. 3-56

Utah Assistive Technology Program

(UATP)........................................................ 9-60

Vermont

Vermont Assistive Technology Project ...... 9-61

Virginia

Alternative Financing Program .................. 9-10

Alternative Financing Technical Assistance

Project ........................................................... 9-9

Enhancing Consumer-Counselor Working

Relationships in Rehabilitation: An

Empirical Research Investigation of

Counselor Expectancies and Working

Alliance as Variables for Optimizing

Consumer-Counselor Relationships,

Consumer Satisfaction, and Rehabilitation

Outcomes .................................................... 1-28

Graph And Print (GAP) .............................. 3-58

Interactive Multimedia to Facilitate the

School-to-Work Transition of Secondary

Students and Young Adults with

Disabilities.................................................. 3-59
Projects by State C-11

A Low-Cost, High-Performance Physical

Activity Monitor (PAM) ............................. 3-57

Middle School Phonemic Awareness

Study ........................................................... 4-34

National ADA Program Assistance

Coordinator ................................................. 7-12

Rehabilitation Research and Training

Center on Workplace Supports ................... 1-11

Research Training and Career

Development Program ................................ 8-26

Technical Assistance for Assistive

Technology Act State Grant Program

Grantees ........................................................ 9-3

Technical Support for Computer and Other

Related Activities ....................................... 8-27

VCU Model Spinal Cord Injury Center ..... 2-42

Virginia Assistive Technology System

(VATS) ........................................................ 9-62

Virginia Traumatic Brain Injury Model

System ........................................................ 2-60

Washington

Multiple Sclerosis Rehabilitation Research

and Training Center .................................... 2-13

Northwest Disability and Business

Technical Assistance Center - Region X .... 7-11

Northwest Regional Spinal Cord Injury

System ........................................................ 2-43

Novel Prosthetic Foot Design Method to

Improve Metabolic Efficiency of BK

Amputee Gait ............................................. 3-45

University of Washington Burn Injury

Rehabilitation Model System ..................... 2-26

The University of Washington Traumatic

Brain Injury Model System ........................ 2-61

Washington Assistive Technology Alliance

(WATA)....................................................... 9-63

West Virginia

West Virginia Assistive Technology System

(WVATS) .................................................... 9-64

Wisconsin

Fair and Appropriate Community

Employment (FACE): A Management

Information System (MIS) for Evaluating

Impact of Employment Programs on

Persons with Disabilities ............................ 1-31

Model Construct for Community

Integration in SCI ....................................... 2-44

Rehabilitation Engineering Research

Center on Information Technology

Access ......................................................... 3-13

Rehabilitation Engineering Research

Center on Telecommunication Access ....... 3-14

Rehabilitation Research and Training

Center on Community Rehabilitation

Programs to Improve Employment

Outcomes .................................................... 1-12

Seeking, Screening, Evaluating,

Describing, and Disseminating Approaches

Used by Two-Year Colleges to Serve

Rehabilitation Services Clients with Severe/

Multiple Functional Limitations in Highly

Effective Ways............................................ 6-17

WisTech ...................................................... 9-65

Wyoming

Wyoming’s New Options in Technology

(WYNOT)................................................... 9-66

Principal Investigators

Principal Investigators D-1

Ammerman, Robert T., PhD

Children’s Hospital Medical Center

513/636-8209 ............................................... 4-28

Anderson, Leonard

Cerebral Palsy Research Foundation

of Kansas

316/688-1888 ............................................... 6-14

Apple, David F., Jr., MD

Shepherd Center, Inc.

404/350-7353 ............................................... 2-32

Armstrong, Thomas J., PhD

University of Michigan

734/763-3742 ................................................. 3-5

Arnold, Nancy, PhD

University of Montana

406/243-2469 ......................................1-20, 1-21

Avery-Meints, Sheryl

Michigan Disability Rights Coalition

800/760-4600 (V/TTY, in state only);

517/333-2477 (V/TTY) ............................... 9-35

Axelson, Peter W.

Beneficial Designs, Inc.

831/429-8447 ............................................... 6-18

Bakke, Matthew H., PhD

The Lexington School for the Deaf/

Center for the Deaf

718/350-3810 ........................................3-9, 3-39

Balcazar, Fabricio E., PhD

University of Illinois/Chicago

312/413-1646 ................................................. 7-1

Beck, Jim

Alaska Department of Labor and

Workforce Development

800/478-4378 (V/TTY, in state only);

907/269-3569 (V/TTY) ............................... 9-12

Belknap, Katherine

ORC Macro

301/608-8998, ext. 100 .................................. 6-6

Berners-Lee, Tim

Massachusetts Institute of Technology

617/253-5702 ................................................. 6-8

Bishop, Jeffrey B., PhD

Future of Technology and Health, LC

319/644-3787 ............................................... 3-49

Blair, Martin E.

Utah State University

435/797-3886 ........................................9-8, 9-60

Blanck, Peter

Community Options, Inc.

202/721-0120 ................................................. 1-3

Blankertz, Laura

Matrix Research Institute

215/569-2240, ext. 217 ................................ 1-27

Bodine, Cathy

University of Colorado Health

Sciences Center

800/255-3477 (in state only);

303/864-5100 (V); 303/864-5110 (TTY) .... 9-17

Brabyn, John A., PhD

The Smith-Kettlewell Eye Research

Institute

415/345-2100 ............................................... 3-21

Braddock, David L., PhD

University of Illinois/Chicago

312/413-1647 ..........................................2-8, 7-6

Braunschweig, Carol, PhD

University of Illinois/Chicago

312/996-8055 ............................................... 2-71

Brown, Catana, PhD, OTR

University of Kansas Medical Center

913/588-7195 ............................................... 4-19

Brubaker, Clifford, PhD

University of Pittsburgh

412/647-1273 (V); 412/647-1291

(TTY) ..................................................3-12, 8-24
D-2 Principal Investigators

Bruyère, Susanne, PhD

Cornell University

607/255-7727 (V) .................................1-8, 1-14

Bryen, Diane, PhD

Temple University

800/204-7428 (V); 800/750-7428

(TTY); 215/204-5966 (V);

215/204-1356 (V/TTY) ............................... 9-52

Budde, James, EdD

University of Kansas

785/864-4095 ................................................. 6-5

Bunnell, H. Timothy, PhD

University of Delaware

302/651-6835 ............................................... 3-24

Burgdorf Jr., Robert L.

301/585-9290 ................................................. 8-6

Burkhauser, Richard,

Cornell University

607/255-7727 (V); 607/255-2891 (TTY) ...... 1-8

Bushnik, Tamara, PhD

Santa Clara Valley Medical Center

(SCVMC)

408/295-9896 ............................................... 2-29

Camacho, Thomas J.

CNMI Governor’s Developmental

Disabilities Council

670/664-7000 (V) ........................................ 9-48

Campagna, William

California Department of Rehabilitation

916/263-8686 (V) ........................................ 9-16

Cardenas, Diana D., MD

University of Washington

206/543-8171 ............................................... 2-43

Carey, James, PhD

University of Minnesota

612/626-2746 ............................................... 2-77

Carroll, Raymond A.

Rhode Island Department of Human

Services

800/752-8088 (in state only);

401/421-7005, ext. 390 (V);

401/421-7016 (TTY) ................................... 9-54

Carroll, Richard, PhD

Arizona University Affiliated

Programs

520/523-4791 (V); 520/523-1695

(TTY) ............................................................. 5-1

Carter, R. E., MD

The Institute for Rehabilitation and

Research (TIRR)

713/797-5910 (V) ........................................ 2-40

Chan, Fong, PhD, CRC

Foundation for Rehabilitation

Education and Research

618/536-7704 ............................................... 4-18

Chesney, Denise A.

Beneficial Designs, Inc.

831/429-8447 ............................................... 6-18

Chesnut, Randall M., MD

Oregon Health Sciences University

503/494-8311 ......................................2-57, 2-89

Childress, Dudley S., PhD

Northwestern University

312/238-6500 ..........................................3-3, 3-4

Churchill, Russell J., PhD

American Research Corporation of

Virginia

540/731-0655 ............................................... 3-59

Clark, Florence, PhD, OTR

University of Southern California

323/442-2875 ............................................... 2-65
Principal Investigators D-3

Cleveland, Lynne

Vermont Department of Aging and

Disabilities

800/750-6355 (V/TTY, in state only);

802/241-2620 (V/TTY) ............................... 9-61

Coker, Charles C., PhD

Research Solutions International (RSI)

715/235-7531 ............................................... 1-31

Collins, James J., PhD

Boston University

617/353-0390 ............................................... 8-18

Collins, Michael

Community Options, Inc.

202/721-0120 ................................................. 1-3

Cook, Judith A., PhD

University of Illinois/Chicago

312/422-8180 ext. 19 ..................................... 8-1

Cook, Ricki

North Carolina Department of Health and

Human Services

919/850-2787 (V/TTY) ............................... 9-46

Corrigan, John D., PhD

Ohio Valley Center for Brain Injury

Prevention and Rehabilitation

614/293-3830 ............................................... 2-56

Cranmer, T. V., PhD

International Braille Research Center

301/593-0555 ............................................... 3-32

Dalto, Michael

State of Maryland

410/554-9230; 800/832-4827 ........................ 9-5

Dansky, Howard

Jewish Employment and Vocational

Service

215/836-2809 ............................................... 1-26

Davies, Daniel

AbleLink Technologies, Inc.

719/592-0347 ............................................... 4-36

de Jong, Jim

University of Missouri/

Columbia

573/882-3600 (V) .......................................... 7-8

DeJong, Gerben, PhD

National Rehabilitation

Hospital Research Center

202/466-1900 ..................... 1-15, 2-5, 2-14, 2-67

deLateur, Barbara J., PhD

Baltimore Regional Burn

Center

410/532-4717 ............................................... 2-23

DeLisa, Joel A., MD

Kessler Medical Rehabilitation

Research and Education Corp.

973/243-6805 ............................................... 2-37

Dellario, Donald J., PhD

Matrix Research Institute

215/569-2240 (V); 215/569-8098

(TTY) ........................................................... 1-10

DeRuyter, Frank, PhD

Duke University

919/684-6271 ............................................... 3-10

Dewald, Julius, PT, PhD

Rehabilitation Institute Research

Corporation

312/238-2210 ............................................... 2-69

Dijkers, Marcel, PhD

Rehabilitation Institute of

Michigan

313/993-7891 ............................ 2-35, 2-85, 2-86

Dikmen, Sureyya S., PhD

University of Washington

206/685-0935 ............................................... 2-61

Ditunno, John F., MD

Thomas Jefferson University

215/955-5580 ............................................... 2-39
D-4 Principal Investigators

Donovan, William H., MD

The Institute for Rehabilitation and

Research (TIRR)

713/797-5912 ............................................... 2-41

Dote-Kwan, Jamie

California State University

323/343-4320 ............................................... 4-13

Drainoni, Mari-Lynn, PhD

Medicaid Working Group Boston

University

617/426-4447 ............................................... 2-16

Duggan, Colette, PhD

Wayne State University

313/745-1070; 313/745-9735 ...................... 4-22

Dunlap, Glen, PhD

University of South Florida

813/974-3115 ................................................. 4-2

Dunst, Carl, PhD

Orelena Hawks Puckett Institute

828/255-0470 ............................................... 3-41

Durand, V. Mark, PhD

State University of New York (SUNY) at

Albany

518/442-5132 ............................................... 4-25

Elrod, Susanne

University of Texas at Austin

800/828-7839 (V/TTY, in state only);

512/471-7621 (V); 512/471-1844 (TTY) .... 9-58

Englander, Jeffrey, MD

Santa Clara Valley Medical Center

(SCVMC)

408/885-2000 ............................................... 2-46

Engrav, Loren H., MD

University of Washington

206/731-3209 ............................................... 2-26

Epps, Irvine E., EdD

Texas Southern University

713/313-7224 ................................................. 8-2

Erickson, Karen, PhD

University of New Hampshire

603/862-4274 ............................................... 2-79

Everson, Jane M., PhD

Louisiana State University Health Sciences

Center

504/942-8188 ............................................... 4-20

Farkas, Marianne

Boston University

617/353-3549 ................................................. 4-5

Farra-San Nicolas, Heidi E., PhD

University of Guam, UOG Station

671/735-2482 (V) ........................................ 9-23

Fauerbach, James A., PhD

Baltimore Regional Burn Center

410/550-0894; 410/550-5298 ...................... 2-23

Faulhaber, Charles B., PhD

University of California/Berkeley

510/642-3781 ................................................. 5-7

Ferrante, Richard

University of South Carolina School of

Medicine

803/935-5231 (V) ........................................ 9-55

Ficarro, John M.

Connecticut Department of Social Services

800/537-2549 (in state only);

860/424-4881 (V); 860/424-4839 (TTY) .... 9-18

Fiedler, Irma, PhD

Medical College of Wisconsin

414/259-3645; 414/805-7345 ...................... 2-44

Finestra, Susan

United Cerebral Palsy Associations, Inc.

217/787-7639 ............................................... 1-16
Principal Investigators D-5

Fischlowitz-Leong, Barbara

Physically Handicapped

808/532-7110 ............................................... 9-24

Fisher, Nadine, EdD

State University of New York (SUNY)

at Buffalo

716/829-3141 ............................................... 2-83

Fletcher, Valerie

Adaptive Environments Center, Inc.

617/695-1225, ext. 26 .................................... 7-2

Foley, Susan, PhD

Children’s Hospital

617/355-2075 (Foley) .................................. 1-13

Follansbee, Robert, EdD

Education Development Center, Inc.

617/969-7100 ............................................... 3-36

Forrester, Huntley

United Cerebral Palsy Associations of New

Jersey

609/392-4004 ................................................. 7-3

Forrester, J. Chase, JD

KATS Network Coordinating Center

800/327-5287 (V/TTY, in state only);

502/327-0022

(V/TTY); 502/327-9855 (TTY) ................... 9-30

Freed, Geoff

WGBH Educational Foundation

617/300-4223 ............................................... 3-35

Frieden, Lex

The Institute for Rehabilitation and

Research (TIRR)

713/520-0232 (V); 713/520-5136 (TTY) ...... 7-7

Friedman, Robert, PhD

University of South Florida

813/974-4661 (V); 800/955-8771 (TTY) ...... 4-3

Friesen, Barbara, PhD

Portland State University

503/725-4256 ................................................. 4-9

Fuchs, Douglas

Vanderbilt University

615/343-4782 ............................................... 4-31

Fuchs, Lynn

Vanderbilt University

615/343-4782 ............................................... 4-31

Fujiura, Glenn T., PhD

University of Illinois/Chicago

312/413-1977 ................................................. 5-5

Fulford, Cris

ATTAIN Inc.

812/254-7305 (V); 888/288-9319 (TTY) .... 9-27

Galea’i, Pete P.

Division of Vocational Rehabilitation

011/684/699-1529 (V); 011/684/233-7874

(TTY) ........................................................... 9-13

Gaskin, Sue

Arkansas Rehabilitation Services

800/828-2799 (V/TTY, in state only);

501/666-8868 (V/TTY) ............................... 9-15

Gattis Jr., Robert H.

Meeting the Challenge, Inc.

719/444-0252 ............................................... 6-13

Gay, Jane, RN

Iowa University Affiliated Program

319/356-4463 ............................................... 9-28

Geer, Sajean

Pacific Business Insights, Inc. (PBI)

808/328-9981 ............................................... 1-30

Gilbride, Dennis, PhD

Syracuse University

315/443-5264 ............................................... 1-23
D-6 Principal Investigators

Gill, Carol J., PhD

University of Illinois/Chicago

312/355-0550; 312/413-0453 (TTY) ............. 5-9

Given, Barbara, PhD

George Mason University

703/993-4406 ............................................... 4-34

Glenn, Mel B., MD

Spaulding Rehabilitation Hospital

617/573-2456 ............................................... 2-49

Glueckauf, Robert L., PhD

University of Florida College of Heath

Professions

352/265-0680, ext. 4-4129;

800/282-2962 ............................................... 4-15

Gold, Robert

ORC Macro

301/572-0887 ............................................... 6-15

Goldberg, Larry R.

WGBH Educational Foundation

617/300-3496 ......................................3-33, 3-34

Golden, Dawn

Golden Ventures

813/835-5970 ............................................... 1-32

Golden, Diane, PhD

State of Missouri

816/373-5193 ........................................9-6, 9-38

Goldman, Amy S.

Temple University

800/204-7428 (V); 800/750-7428 (TTY);

215/204-5966 (V); 215/204-1356

(V/TTY) ....................................................... 9-52

Goldthwaite, John

Georgia Institute of Technology

404/894-0563 ............................................... 3-15

Gordon, Wayne A., PhD

Mount Sinai School of Medicine

212/659-9372 (V); 212/241-8978 (TTY) ...... 4-8

Green, David, MD, PhD

Rehabilitation Institute Research

Corporation

312/238-4701 ............................................... 2-70

Gugerty, John

University of Wisconsin/Madison

608/263-2724 ............................................... 6-17

Gunther, Wilhelmina

IATP

800/852-5110 (V/TTY, in state only);

217/522-7985 (V/TTY);

217/522-9966 (TTY) ................................... 9-26

Hadley, Trevor, PhD

Matrix Research Institute

215/569-2240 (V); 215/569-8098 (TTY) .... 1-10

Hagglund, Kristofer, PhD

University of Missouri

573/882-8847 ............................................... 2-36

Hagner, David, PhD

University of New Hampshire

603/862-4320 ............................................... 4-24

Hahn, Harlan, PhD

310/395-5804 ................................................. 8-4

Halverson, Lynn

ORC Macro

301/572-0887 ............................................... 6-15

Hammond, Flora, MD

Charlotte-Mecklenburg Hospital Authority

704/355-1502; 704/355-4330 ...................... 2-55

Hanks, Robin, PhD

Wayne State University and Rehabilitation

Institute of Michigan

313/745-9736 ............................................... 2-50

Harkins, Judy, PhD

University of Wisconsin/Madison

202/561-5257 ............................................... 3-14
Principal Investigators D-7

Harry, Jason D., PhD

Sensory Technologies, Inc.

401/453-9933 ............................................... 3-55

Hart, Karen A., PhD

Baylor College of Medicine

713/797-5946 ............................................... 4-10

Heinemann, Allen W., PhD

Northwestern University

312/238-2802 ............................................... 8-13

Helfrich, Christine, PhD

University of Illinois/Chicago

312/996-4626 ............................................... 5-10

Heller, Tamar, PhD

University of Illinois/Chicago

800/996-8845 (V); 312/413-1860 (V);

312/413-0453 (TTY) ............................2-8, 8-15

Helm, Phala, MD

University of Texas

214/648-2288 ............................................... 2-24

Henderson, Judy

Lucile Packard Children’s Hospitals

at Stanford

650/237-9200 ............................................... 3-20

Herndon, David, MD

University of Texas Medical Branch

409/770-6731 ............................................... 2-25

Heydt, Richard, PhD

SRI International

650/859-4452 ............................................... 3-18

Hibbard, Mary R., PhD

Mount Sinai School of Medicine

212/659-9374 ............................................... 8-23

High Jr., Walter M., PhD

The Institute for Rehabilitation and

Research (TIRR)

713/666-9550 ......................................2-12, 2-59

Hill, Barbara

Wisconsin Assistive Technology

Program

608/266-1794 (V/TTY); 608/267-9880

(TTY) ........................................................... 9-65

Hobson, Douglas A., PhD

University of Pittsburgh

412/647-1273 (V); 412/647-1291

(TTY) ........................................................... 3-12

Holland, Janice A.

University Affiliated Center for

Developmental

Disabilities

304/766-4694 (V) ........................................ 9-64

Horner, Robert H.

University of Oregon

541/346-2462 ............................................... 4-29

Howe, Marylyn

Children’s Hospital

617/355-7167 (TTY) ................................... 9-34

Hull, Raymond, PhD

Wichita State University

316/978-3271 ............................................... 3-31

Hurvitz, Edward, MD

University of Michigan

734/936-7200 ............................................... 2-76

Jackson, Aime B., MD

University of Alabama/Birmingham

205/934-3330 ........................................2-1, 2-27

Jans, Lita, PhD

InfoUse

510/549-6509 ........................................1-29, 9-1

Jensema, Carl , PhD

Institute for Disabilities Research and

Training, Inc. (IDRT)

301/942-4326 (V/TTY) ......................3-50, 3-61
D-8 Principal Investigators

Jette, Alan M., PhD

Boston University

617/353-2704 ........................................5-4, 8-19

Johns, Alicia C.

University Legal Services

202/547-0198 (V); 202/547-2657

(TTY) ........................................................... 9-20

Johnson, David E., PhD

405/271-2131 ................................................. 8-8

Johnson, David R., PhD

University of Minnesota

612/624-1062 ............................................... 4-23

Johnston, Mark V., PhD

Kessler Medical Rehabilitation

Research and Education Corporation

973/243-2015 ......................................2-54, 8-22

Johnstone, Brick, PhD

University of Missouri/Columbia

573/882-6258 ............................................... 2-53

Jones, Cynthia

Center for an Accessible Society

Exploding Myths, Inc.

619/232-2727, ext. 111 (V);

619/234-3130 (TTY) ..................................... 6-3

Jones, Erica C.

Public Health Institute

510/848-2980 (V); 510/848-1840

(TTY) ........................................................... 7-10

Jones, Jeffery

Rehabilitation Institute of Chicago

312/908-4292 ............................................... 2-15

Jones, Michael L., PhD

Shepherd Center, Inc.

404/350-7595 ............................................... 3-27

Kaplan, Deborah, JD

World Institute on Disability

510/251-4338 (V);

510/208-9493 (TTY); 510/763-4100

(V, main switchboard).................................... 4-1

Kaplan, Shelley

United Cerebral Palsy Associations, Inc.

404/385-0636 ................................................. 7-5

Kasnitz, Devva, PhD

510/251-4348 ................................................ 8-3

Keating, Thomas, PhD

Eugene Research Institute

541/342-3763 ............................................... 3-43

Kemp, Bryan J., PhD

Los Amigos Research and Education

Institute, Inc. (LAREI)

562/401-7402 ..........................................2-3, 2-4

Keninger, Karen A.

Iowa Department for the Blind

515/281-1335 ............................................... 3-30

Kennedy Smith, William, MD

Physicians Against Land Mines Center

for International Rehabilitation

312/923-0030 ................................................. 3-4

Kickul, Grady

DakotaLink

605/773-3195 (V) ........................................ 9-56

Kiernan, William E. PhD

Children’s Hospital

617/355-7074 ................................................. 1-5

Kirshbaum, Megan, PhD

Through the Looking Glass

510/848-1112 (V); 800/644-2666 (V);

800/804-1616 (TTY) ..................................... 6-1

Klaus, Alan

New Mexico State Department of

Education

800/866-2253 (V/TTY); 800/659-4915

(TTY); 505/954-8533 (V/TTY) ................... 9-44
Principal Investigators D-9

Klein, Mary G., PhD

MossRehab

215/456-7864 ............................................... 2-19

Kniskern, Joy

Georgia Department of Human

Resources

800/497-8665 (V, in state only);

404/657-3084 (V); 404/657-3095

(TTY) ........................................................... 9-22

Knorr, Kenneth

Virginia Department of Rehabilitative

Services

804/662-9995 ......................................9-10, 9-62

Koncelik, Joseph

Georgia Institute of Technology

404/894-1413 ............................................... 6-19

Koppenhaver, David, PhD

University of New Hampshire

603/862-4274 ............................................... 2-79

Kraft, George H., MD

University of Washington

206/543-7272 ............................................... 2-13

Krahn, Gloria, PhD

Oregon Health Sciences University

503/494-8364 ............................................... 2-11

Krause, J. Stuart, PhD

Shepherd Center, Inc.

404/350-7551 ............................................... 2-68

Kreutzer, Jeffrey S., PhD

Virginia Commonwealth University

804/828-3704 ......................................2-60, 8-26

Krupp, Lauren B., MD

State University at Stony Brook

631/444-8119 ............................................... 2-87

Kuiken, Todd A., MD, PhD

Rehabilitation Institute Research

Corporation

312/238-8072 ............................................... 3-29

Kutash, Krista, PhD

University of South Florida

813/974-4622 ............................................... 4-16

Lakin, Charlie, PhD

University of Minnesota

612/624-5005 ................................................. 4-6

Lammertse, Daniel P., MD

Craig Hospital

303/789-8220 ............................................... 2-30

Landau, Steven

Touch Graphics

718/383-8265 ............................................... 3-54

Landsburger, Sam, MD

Los Amigos Research and Education

Institute, Inc. (LAREI)

562/401-7994 (V); 562/803-4533 (TTY) ...... 3-1

Lane, Joseph

State University of New York (SUNY)

at Buffalo

716/829-3141 (V); 800/628-2281 (TTY) ...... 3-7

Langton, Anthony J., MS

United Cerebral Palsy Associations, Inc.

202/776-0406 ................................................. 6-4

LaPlante, Mitchell P., PhD

University of California/San Francisco

415/502-5210 (V) .......................................... 5-2

Larson, Barbara A.

Lifease, Inc

651/636-6869 ............................................... 3-51

Lee, Judith A.

North Dakota Department of Human

Services

800/265-4728 (V/TTY); 701/265-4807

(V/TTY) ....................................................... 9-47

Lehmann, Justus F., MD

University of Washington

206/543-3600 ............................................... 3-45
D-10 Principal Investigators

Lence, Ellen

New Jersey Protection and Advocacy, Inc.

800/342-5832 (V, in state only);

609/633-7106 (TTY); 609/777-0945 ........... 9-43

Levin, Harvey S., PhD

Baylor College of Medicine

713/798-4860 ............................................... 2-21

Levine, Simon

University of Michigan

734/936-7170 ............................................... 3-37

Lewis, Christine

University of the Virgin Islands

340/693-1323 ............................................... 9-59

Lezotte, Dennis C., PhD

University of Colorado Health Sciences

Center

303/315-6873 ............................................... 2-22

Light, Janice, PhD

Pennsylvania State University

814/863-2010 ............................................... 3-44

Linroth, Ronna

State of Minnesota Department of

Administration

800/657-3862 (V, in state only);

800/657-3895 (TTY, in state only);

651/296-2771 (V); 651/296-8478 (TTY) .... 9-36

Loux, Donny

Nevada Rehabilitation Division

888/337-3839 (V, in state only);

775/687-4452 (V); 775/687-3388 (TTY) .... 9-41

MacKeben, Manfred, PhD

The Smith-Kettlewell Eye Research

Institute

415/345-2112 ............................................... 3-22

Magrab, Phyllis, PhD

Georgetown University

202/687-8617 ................................................. 2-6

Mahoney, Richard

Applied Resources Corporation

Rehabilitation Technologies Division

973/575-0650 ............................................... 3-52

Maiman, Dennis, MD

Medical College of Wisconsin

414/259-3645; 414/805-7345 ...................... 2-44

Malec, James F., PhD

Mayo Medical Center

507/255-5109 ............................................... 2-51

Mann, William C., OTR, PhD

State University of New York (SUNY)

at Buffalo

800/628-2281 ........................................3-6, 4-26

Manz, Patricia H., PhD

215/590-7675 ............................................... 8-12

Martinez, Kathy

World Institute on Disability

510/251-4326 ................................................. 6-2

Maynard Hume, Joyce

Meeting the Challenge, Inc.

719/444-0268 (V/TTY) ................................. 7-9

McAllister, Thomas W., MD

Dartmouth Medical School

603/650-7552 ......................................2-81, 2-82

McCoy, Taffy (M.L.), PhD

The Thresholds

773/880-6260, ext. 230 ................................ 1-18

McCrory, Mac

Oklahoma State University

800/257-1705 (V/TTY);

405/744-9864 (V) ........................................ 9-50

McDonald, Craig, MD

University of California/Davis

530/752-2903 (V) .......................................... 2-2
Principal Investigators D-11

McGregor, Gail

University of Montana

800/732-0323 (V/TTY); 406/243-5676

(V/TTY) ....................................................... 9-39

McKinley, William O., MD

Virginia Commonwealth University

804/828-0861 ............................................... 2-42

McMahon, Brian, PhD

Virginia Commonwealth University

804/828-1132 ............................................... 1-28

McNaught, Byron

Oregon Disabilities Commission

800/677-7512 (V/TTY, in state only);

503/361-1201 (V/TTY) ............................... 9-51

McNeal, Donald, PhD

Los Amigos Research and Education

Institute, Inc. (LAREI)

562/401-7994 (V); 562/803-4533

(TTY) ....................................................3-1, 3-16

Meidenbauer, Nancy

RESNA

703/524-6686. ext. 304 (V);

703/524-6639 (TTY) ..................................... 9-9

Meltzer, Lynn

Institute for Learning and

Development

781/861-3711 ............................................... 4-37

Menz, Fredrick E., PhD

University of Wisconsin/Stout

715/232-2236 (V); 715/232-5025

(TTY) ........................................................... 1-12

Meyer III, Walter J., MD

University of Texas Medical Branch

409/772-3619 ............................................... 4-32

Meythaler, Jay M., JD, MD

University of Alabama/Birmingham

205/934-2088 ......................................2-62, 2-63

Miller, Keith

University of Wyoming

307/766-2762 (V) ........................................ 9-66

Miller, Nancy, PhD

University of Maryland, Baltimore

County

410/455-3889 ............................................... 2-73

Mineo Mollica, Beth A., PhD

Center for Applied Science and

Engineering

302/651-6836 ......................................3-25, 9-19

Miranda, Maria I.

University of Puerto Rico

787/758-2525, ext. 4413;

787/754-8034 (TTY) ................................... 9-53

Moore, Dennis C., EdD

Wright State University

937/259-1384 (V/TTY) ................................. 1-9

Moore, J. Elton, EdD

Mississippi State University

662/325-2001 (V); 662/325-8693

(TTY) ............................................................. 1-6

Morford, Ronald A.

Automated Functions, Inc.

703/883-9797 ............................................... 3-58

Morris, Michael

Community Options, Inc.

202/721-0120 ................................................. 1-3

Moss, Kathryn E., PhD

University of North Carolina

919/966-6061 ............................................... 1-24

Mulroy, Sara J., PhD

Los Amigos Research and Education

Institute, Inc. (LAREI)

562/401-7177 ............................................... 3-17
D-12 Principal Investigators

Munro, Jeanne

University of Washington

360/438-8008 (V); 360/438-8644

(TTY) ........................................................... 9-63

Mwachofu, Ari K., PhD

University of Arkansas/Pine Bluff

870/543-8532 ............................................... 2-64

Mysiw, W. Jerry, MD

Ohio State University

614/293-3801 ......................................2-18, 2-88

Nelson Bryen, Diane, PhD

Temple University

214/204-1356 ................................................. 9-7

Nesbit, Julie M.

LATAN

800/270-6185 (V/TTY);

225/925-9500 (V/TTY) ............................... 9-31

Nesthurai, Shanker, MD

Boston University Medical Center

Hospital

617/638-7310 ............................................... 2-33

Newman, Shelia

CESSI

703/448-6155 (V); 703/448-3079

(TTY) ..................................................7-12, 8-27

Nicholson, Joanne, PhD

University of Massachusetts Medical

School

508/856-8721 ............................................... 2-75

Nisbet, Jan, PhD

University of New Hampshire

Technology Partnership

603/862-4320 (V/TTY) ............................... 9-42

Nosek, Margaret A., PhD

Baylor College of Medicine

713/960-0505 ......................................2-90, 4-33

Novack, Thomas, PhD

University of Alabama/Birmingham

205/934-3454 ............................................... 2-45

O’Neil, Margaret E.

267/330-0155; 215/762-1791 ...................... 8-11

Oberstein, Jill

Northern Arizona University

800/477-9921 (V); 602/728-9532 (V);

602/728-9536 (TTY) ................................... 9-14

Odum, Mark X.

KRA Corporation

800/346-2742 (V); 301/562-2400 (V);

301/495-5626 (TTY) ..................................... 6-7

Olkin, Rhoda, PhD

Through the Looking Glass

800/644-2666 ............................................... 4-12

Olson, Toby

Washington State Governor’s

Committee on Disability Issues and

Employment

360/438-4116 (V/TTY) ............................... 7-11

Ottenbacher, Kenneth J., PhD

University of Texas Medical Branch

409/772-3002 ............................................... 8-25

Palfrey, Judith, MD

Children’s Hospital

617/355-6714 ............................................... 1-13

Pape, Theresa Louise-Bender, DrPH

312/503-0429 ................................................. 8-7

Parker, B. Eugene, Jr., PhD

Barron Associates, Inc.

804/973-1215 ............................................... 3-57

Parker, Jerry C., PhD

University of Missouri/Columbia

573/814-6480 ......................................2-10, 8-21
Principal Investigators D-13

Patrick, Adele

University of Georgia

706/542-1812 ............................................... 1-17

Paul-Brown, Diane

American Speech-Language-Hearing

Association

301/897-5700, ext. 4297 .............................. 2-74

Pencak, Lawrence C.

Rehabilitation Engineering and Assistive

Technology Society of North America

(RESNA)

703/524-6686, ext. 305 (V); 703/524-6639

(TTY) ............................................................. 9-3

Pfeiffer, Charles

CyBotic Technologies, Inc.

908/475-2901 ............................................... 3-53

Power, Stephen

Mississippi Department of Rehabilitation

Services

800/852-8328 (V/TTY, in state only);

601/987-4872 (V/TTY) ............................... 9-37

Powers, Laurie, PhD

Oregon Health Sciences University

503/232-9154 ............................................... 4-30

Presson, Daniel

Delta 101 Technologies

530/743-3722 ............................................... 3-46

Preston, Paul, PhD

Through the Looking Glass

510/848-1112 (V); 800/644-2666 (V);

800/804-1616 (TTY) ..................................... 6-1

Quigley, Mary, JD

Iowa University Affiliated Program

319/356-4402 ............................................... 9-28

Ragnarsson, Kristian T., MD

Mount Sinai School of Medicine

212/659-9360 ............................................... 2-38

Rahman, Tariq, PhD

Alfred I. duPont Institute of the Nemours

Foundation

302/651-6831 ............................................... 3-26

Rasinski, Paul

Maryland Governor’s Office for

Individuals with Disabilities

800/832-4827 (V/TTY); 410/554-9230

(V/TTY) ....................................................... 9-33

Reinkensmeyer, David, PhD

Rehabilitation Institute Research

Corporation

949/824-5218 ............................................... 3-28

Remund, Kent

Lincoln Laboratories

435/760-1488 ............................................... 3-56

Rintala, Diana H., PhD

Baylor College of Medicine

713/797-5946 ............................................... 4-10

Rogers, Sally E.

Boston University

617/353-3549 (V) ........................................ 8-17

Rosano-Kazckowski, Lisa

New York State Office of Advocate for

Persons with Disabilities

800/522-4369 (V/TTY/Spanish, in state

only); 518/474-2825 (V); 518/473-4231

(TTY) ........................................................... 9-45

Rosen, Michael, PhD

Medstar Research Institute

202/877-1932 ................................................. 3-2

Rosenberg, Steven

University of Colorado Health Sciences

Center

303/315-0178 ............................................... 4-14
D-14 Principal Investigators

Rosenthal, Mitchell, PhD

Kessler Medical Rehabilitation

Research and Education Corporation

973/243-2015 ............................................... 2-54

Roth, Elliot J., MD

Rehabilitation Institute Research

Corporation

312/238-4637 ................................................. 2-9

Rubin, Stanford E., EdD, CRC

Foundation for Rehabilitation

Education and Research

618/536-7704 ............................................... 4-18

Russinova, Zlatka, PhD

Boston University

617/353-3549 ............................................... 1-19

Rymer, W. Zev, MD, PhD

Northwestern University

312/908-3381 ............................................... 8-14

Sable, Janet, PhD

University of New Hampshire

603/862-3401 ............................................... 2-80

Sack, Sara H., PhD

University of Kansas Center for

Research, Inc.

316/421-8367 ........................................9-4, 9-29

Sander, Angelle M., PhD

Baylor College of Medicine

713/666-9550 ............................................... 2-20

Schopp, Laura, PhD

University of Missouri/Columbia

573/882-2290 ............................................... 2-78

Schriner, Kay, PhD

University of Arkansas

501/575-6417 ................................................. 5-6

Schultheis, Maria T., PhD

Kessler Medical Rehabilitation

Research and Educational Corporation

973/731-3900, ext. 2270 .............................. 3-38

Schultz, Mark

Nebraska Department of Education

888/806-6287 (V/TTY, in state only);

402/471-0734 (V/TTY); 402/471-0735

(V/TTY) ....................................................... 9-40

Seekins, Tom, PhD

University of Montana

888/268-2743 (V, information service

only); 406/243-5467 (V/TTY) ..............1-7, 1-20

Seiler, Ron

University of Idaho

800/432-8324 (V/TTY); 208/885-3559

(V/TTY) ....................................................... 9-25

Shelden, M’Lisa

405/271-2131 ................................................. 8-9

Sheldon, James R. Jr., Esq.

Neighborhood Legal Services, Inc.

716/847-0650 ................................................. 9-2

Sherer, Mark, PhD

Mississippi Methodist Rehabilitation

Center

601/364-3448 ......................................2-17, 2-52

Shiflett, Samuel C., PhD

Beth Israel Medical Center

646/935-2244 ............................................... 2-84

Shivers, Steve

Alabama Department of

Rehabilitation Services

800/782-7656 (V, in state only);

334/613-3480 (V); 334/613-3519

(TTY) ........................................................... 9-11

Silverstein, Robert

Community Options, Inc.

202/721-0120 ................................................. 1-3

Simon, Sheldon R., MD

Ohio State University Research

Foundation
Principal Investigators D-15

800/784-3425 (V/TTY, in state only);

614/292-2426 (V/TTY); 614/292-3162

(TTY) ........................................................... 9-49

Sims, Edward M., PhD

Vcom3D, Inc.

407/737-7309 ............................................... 3-60

Sipski, Marca L., MD

University of Miami

305/324-3174 ............................................... 2-31

Smith, Mieko Kotake, PhD

Cleveland State University

216/687-4738 ............................................... 1-25

Snow, Mark

Meeting the Challenge, Inc.

719/444-0252 ............................................... 6-12

Spellman, Charles R., EdD

University of Kansas

800/526-3648 (800/KAN DO IT, in state

only); 316/421-8367 (V/TTY) ..................... 9-29

Sprigle, Stephen H., PhD

Center for Rehabilitation Technology

845/786-4806 ............................................... 3-40

Stapleton, David, PhD

Cornell University

607/255-7727 (V); 607/255-2891 (TTY) ...... 1-8

Steinfeld, Edward, ArchD

State University of New York (SUNY) at

Buffalo

716/829-3485, ext. 329 .................................. 3-8

Stewart, Gregory W., MD

Tulane University School of Medicine

504/588-5770 ............................................... 2-72

Stock, Steven E.

AbleLink Technologies, Inc.

719/592-0347 ............................................... 4-35

Stockford, David Noble

Maine CITE Coordinating

Center

207/287-5950 (V); 207/287-

2550 (TTY) .................................................. 9-32

Stodden, Robert, PhD

University of Hawaii at Manoa

808/956-9199 ................................................. 1-4

Stone, John, PhD

State University of New York

(SUNY) at Buffalo

716/829-3141, ext. 169 .................................. 6-9

Story, Molly

North Carolina State University

919/515-3082 ............................ 3-11, 3-42, 6-16

Stringer, Anthony, PhD

Emory University

404/712-5667 ............................................... 2-48

Sutter, Stephen M.

SMS Consulting

970/635-0610 ......................................3-47, 3-48

Tate, Denise G., PhD

University of Michigan

734/936-7052 ......................................2-34, 8-20

Taylor, Renee, PhD

DePaul University

773/325-2060 ............................................... 4-17

Taylor, Steven J., PhD

Syracuse University

315/443-3851 ............................................... 6-10

Toperzer, Rhoda M.

215/327-5298 ............................................... 8-10

Trach, John S., PhD

217/244-9016 ................................................. 8-5
D-16 Principal Investigators

Trybus, Raymond J., PhD

Alliant University Foundation

858/623-2777, ext. 390 (V); 858/554-

1540 (TTY) .................................................... 1-2

Turnbull, Ann, PhD

University of Kansas

785/864-7608 ........................................5-3, 8-16

Turnbull, H. R., PhD

University of Kansas

785/864-7608 ................................................. 5-3

Usiak, Douglas J.

The Western New York Independent

Living Project, Inc.

716/836-0822 ................................................. 4-7

Vandergoot, David, PhD

Center for Essential Management

Services

516/827-5960 ............................................... 1-22

Vanderheiden, Gregg C., PhD

University of Wisconsin/Madison

608/263-5788 ......................................3-13, 3-14

Velozo, Craig A., PhD, OTR

University of Florida

352/846-1950; 352/333-3115 ........................ 5-8

Vessels, Marian S.

TransCen, Inc.

301/217-0124 (V/TTY) ................................. 7-4

Wade, Shari L., PhD

Children’s Hospital Medical Center

513/636-7480 ............................................... 4-27

Walker, Sylvia, EdD

Howard University

202/806-8086 ........................................ 2-7, 4-11

Wallace, Stephen, PhD

San Francisco State University

415/338-6984 ............................................... 3-23

Ward, Terry, PhD

FAAST, Inc.

850/414-1179 ............................................... 9-21

Warschausky, Seth, PhD

University of Michigan

734/936-7052 ............................................... 4-21

Waters, Robert L., MD

Los Amigos Research and Education

Institute, Inc. (LAREI)

562/401-7402 ........................................2-3, 2-28

Watson, Douglas, PhD

University of Arkansas

501/686-9691 (V/TTY) ................................. 1-1

Wehman, Paul, PhD

Virginia Commonwealth University

804/828-1851 (V); 804/828-2494

(TTY) ........................................................... 1-11

Westbrook, John, PhD

Southwest Educational Development

Laboratory

512/476-6861 ............................................... 6-11

White, Glen, PhD

University of Kansas

785/864-4095 ..........................................4-4, 6-5

Whiteneck, Gale, PhD

Craig Hospital

303/789-8204 ......................................2-47, 2-66

Whyte, John

MossRehab

215/456-5924 ............................................... 2-58

Wilkomm, Terese, PhD

University of New Hampshire

Technology Partnership

603/862-4320 (V/TTY) ............................... 9-42

Willams, Brenda

Meeting the Challenge, Inc.

719/444-0252 ............................................... 6-13
Principal Investigators D-17

Wright, Christine

Lucile Packard Children’s Hospitals at

Stanford

650/237-9200 ............................................... 3-19

Wright, Kevin R.

TTAP

615/532-3122 (V); 615/741-4566 (TTY);

800/732-5059 ............................................... 9-57

Projects by Program Type

E- 1 Projects by Program Type

ADA Technical Assistance Projects

Great Lakes Disability and Business

Technical Assistance Center - Region V

(H133D60011) .............................................. 7-6

Great Plains Disability and Business

Technical Assistance Center - Region VII

(H133D60004) .............................................. 7-8

Mid-Atlantic Disability and Business

Technical Assistance Center - Region III

(H133D60006) .............................................. 7-4

National ADA Program Assistance

Coordinator (ED-99-CO-0002) .................. 7-12

New England Disability and Business

Technical Assistance Center - Region I

(H133D60015) .............................................. 7-2

Northeast Disability and Business

Technical Assistance Center - Region II

(H133D60013) .............................................. 7-3

Northwest Disability and Business

Technical Assistance Center - Region X

(H133D60009) ............................................ 7-11

Pacific Disability and Business Technical

Assistance Center - Region IX

(H133D60016) ............................................ 7-10

Rocky Mountain Disability and Business

Technical Assistance Center - Region VIII

(H133D60010) .............................................. 7-9

Southeast Disability and Business

Technical Assistance Center - Region IV

(H133D60018) .............................................. 7-5

Southwest Disability and Business

Technical Assistance Center - Region VI

(H133D60012) .............................................. 7-7

Advanced Rehabilitation Research Training

Projects

Advanced Multidisciplinary Training

Program in Rehabilitation Outcomes

Research (H133P70011) ............................. 8-22

Advanced Rehabilitation Research

Training (H133P000001) ............................ 8-23

Advanced Rehabilitation Research

Training (H133P000005) ............................ 8-15

Advanced Rehabilitation Research

Training Project in Rehabilitation Services

Research (H133P80014) ............................. 8-13

The Development, Implementation, and

Evaluation of a Research Training Program

in Psychiatric Rehabilitation

(H133P70014) ............................................ 8-17

An Integrated Rehabilitation Engineering

Research Training Program

(H133P990003) .......................................... 8-18

Interdisciplinary Rehabilitation Research

Training Program (H133P990001) ............. 8-25

Rehabilitation Health Services Research

Fellowship Program (H133P990004) ......... 8-19

Rehabilitation Research Training Program

(H133P70004) ............................................ 8-16

Rehabilitation Science for Engineers and

Basic Scientists: An Advanced Training

Program (H133P990006)............................ 8-14

Research Enrichment Program for

Physiatrists (H133P80009) ......................... 8-21

Research Training and Career

Development Program (H133P70003) ....... 8-26

Research Training in Rehabilitation

Science with Special Emphasis on

Disability Studies (H133P70013) ............... 8-24

The UMHS/MSU/AACIL Rehabilitation

Research Training Program

(H133P990014) .......................................... 8-20

Alternative Financing Programs

Alternative Financing Program

(H224C000001) ............................................ 9-7

Alternative Financing Program

(H224C000003) .......................................... 9-10

Alternative Financing Program

(H224C000004) ............................................ 9-8

Alternative Financing Technical

Assistance Project (H224C000200) ............. 9-9

Assistive Technology for Kansans

Alternative Financing Program

(H224C000011) ............................................ 9-4

The Assistive Technology Guaranteed

Loan Program: Partnerships for Maxium

AT Access (H224C000009) .......................... 9-5

Assistive Techology Financial Loan

Program - $how-Me Loans

(H224C000015) ............................................ 9-6
E-2 Projects by Program Type

Assistive Technology Technical Assistance

Projects

Assistive Technology Act Data Collection

Project (H224B990001)................................ 9-1

assistivetech.net (formerly Global

Assistive Technology Explorer (GATE))

(H224B990004) .......................................... 6-19

National Assistive Technology (AT)

Advocacy Project (H224B990002) .............. 9-2

Technical Assistance for Assistive

Technology Act State Grant Program

Grantees (H224B990005) ............................. 9-3

Disability and Rehabilitation Research

Projects

Access to Health Care Services for Persons

with Disabilities: Defining the Barriers and

Strategies for Change (H133A990014) ...... 2-16

The Carolinas Traumatic Brain Injury

Rehabilitation and Research System

(CTBIRRS) (H133A980025) ..................... 2-55

Center for International Rehabilitation

Research Information and Exchange

(CIRRIE) (H133A990010) ........................... 6-9

Center for Minority Training and Capacity

Building for Disabilities Research

(H133A990024) ............................................ 8-2

Center on Emergent Disability: A National

Study on the Changing Impact of Major

Demographic, Health, Social, and

Economic Trends on the Manifestation of

Disability (H133A990017) ........................... 5-5

Collaborative Study of Impaired SelfAwareness After Traumatic Brain Injury

(H133A980067) .......................................... 2-17

A Comprehensive System of Care for

Traumatic Brain Injury (H133A70018)...... 2-46

Disability and Rehabilitation Research

Project to Disseminate Independent Living

Research Information Through the Mass

Media to Persons with Disability

(H133A980045) ............................................ 6-3

A Double-Blind, Placebo-Controlled Trial

Exploring the Efficacy of Nortriptyline and

Amantadine in the Management of PostTraumatic Agitation (H133A980056) ........ 2-18

Effects of Methylphenidate on Working

Memory and Cerebral Glucose

Metabolism in Persons with Severe

Traumatic Brain Injury (H133A980073).... 2-21

Exercise and Recreation for Individuals

with a Disability: Assessment and

Intervention (H133A60032) ....................... 2-15

A Four-Year Research and Demonstration

Project to Address Ways to Improve the

Employment Practices Covered by Title I

of the Americans with Disabilities Act

(ADA) (H133A70005) ............................... 1-14

Georgia Model Brain Injury System

(GAMBIS) (H133A980028)....................... 2-48

Ideas for the New Millennium

(H133A990006) ............................................ 6-2

Impact of Family Environment on Patient

and Family Outcome After TBI: A MultiCenter Study (H133A980058) .................... 2-20

Improving Research Information

Dissemination and Utilization to Promote

Independent Living (The RIIL Project)

(H133A980048) ............................................ 6-5

Information Technology Technical

Assistance and Training Center

(H133A000405) .......................................... 3-15

Johns Hopkins University Burn Injury

Rehabilitation Model System

(H133A70025) ............................................ 2-23

Leadership Development - A New

Generation of Effective Leadership

(H133A990020) .......................................... 4-11

Missouri Model Traumatic Brain Injury

System (MOMBIS) (H133A980008) ......... 2-53

Model Brain Injury System

(H133A980036) .......................................... 2-51

Model System for Burn Injury

Rehabilitation (H133A70023) .................... 2-24

Model System for Burn Injury

Rehabilitation (H133A980055) .................. 2-22

A Model System of Brain Injury Care in

the Philadelphia Region (H133A70033) .... 2-58

National Center for the Dissemination of

Disability Research (NCDDR)

(H133A990008) .......................................... 6-11

National Resource Center for Parents with

Disabilities (H133A980001) ........................ 6-1
E- 3 Projects by Program Type

National Resource Center on Supported

Living and Choice for People with Mental

Retardation and Developmental

Disabilities (H133A990001) ...................... 6-10

Northern New Jersey Traumatic Brain

Injury System (NNJTBIS)/NIDRR TBI

Model Systems National Database

(H133A980030) .......................................... 2-54

Ohio Regional Traumatic Brain Injury

Model System (H133A70032) ................... 2-56

Oregon Model Traumatic Brain Injury

System (H133A980027) ............................. 2-57

Pediatric Burn Injury Rehabilitation Model

System (H133A70019) ............................... 2-25

Rehabilitation Services for Persons with

Emergent Disabilities: Medical

Rehabilitation Services for Persons with

Disabilities (H133A990013) ...................... 2-14

Rocky Mountain Regional Brain Injury

System (H133A980020) ............................. 2-47

Southeastern Michigan Traumatic Brain

Injury System (H133A70021) .................... 2-50

TECH CONNECTIONS: Improving the

Utilization of Existing and Emerging

Rehabilitation Technology in the State

Vocational Rehabilitation Program

(H133A980052) ............................................ 6-4

Traumatic Brain Injury Care System

(H133A980010) .......................................... 2-45

Traumatic Brain Injury Model System

(H133A980034) .......................................... 2-49

Traumatic Brain Injury Model System of

TIRR (H133A70015).................................. 2-59

Traumatic Brain Injury (TBI) Model

System of Mississippi (TBIMSM)

(H133A980035) .......................................... 2-52

Treatment of Shoulder Dysfunction in Polio

Survivors and Elderly Adults with Lower

Extremity Impairment (H133A000101) ..... 2-19

University of Washington Burn Injury

Rehabilitation Model System

(H133A70014) ............................................ 2-26

The University of Washington Traumatic

Brain Injury Model System

(H133A980023) .......................................... 2-61

Virginia Traumatic Brain Injury Model

System (H133A980026) ............................. 2-60

Web Accessibility Initiative - Phase II

(H133A000500) ............................................ 6-8

Working It Out Together: Women with

Disabilities and Employment

(H133A990019) .......................................... 1-13

Fellowships (Distinguished)

Fundamental Disability Concepts and the

Courts (H133F000067) ................................. 8-6

Health and Disability: Pursuing Conceptual

Clarity in Rehabilitation Measures

(H133F000030) ............................................ 8-4

A Life Course Approach to Peerage and

Leadership in the Disability Rights

Movement (H133F000044) .......................... 8-3

Transitioning to Employment Through

Secondary Education Job Development,

Placement, and Negotiation of Supports

(H133F000070) ............................................ 8-5

Fellowships (Merit)

Access to Rehabilitation Services and

Technology for Children with Special

Health Care Needs: Findings and

Recommendations for Families and

Providers (H133F000062) .......................... 8-11

The Assessment of Consciousness

Following a Traumatic Brain Injury Among

Veterans and Non-Veterans - Phase II

(H133F000013) ............................................ 8-7

Evidence for Clinically-Useful Tests and

Test Clusters of Lumbar, Sacroiliac, and

Hip Joint Movement Impairment in

Patients Categorized by Mechanical Low

Back Pain Status, Low Back Disability, and

General Health Status (H133F000050) ........ 8-8

Project POP: Placement Options for

Preschoolers with Developmental

Disabilities and Delays (H133F000023) ...... 8-9

Rehabilitative Impact of Integrated
E-4 Projects by Program Type

Spiritual Care On An Inpatient Oncology

Unit (H133F000042) .................................. 8-10

An Urban Response to IDEA ‘97: The

Development and Examination of a

Community Partnership Approach to

Support Paraprofessionals in Urban Schools

(H133F000056) .......................................... 8-12

Field Initiated Projects (FIPs)

Access Solutions for Rich Media: Tools,

Pathways, and Resources

(H133G000109) .......................................... 3-35

Access to Convergent Media

(H133G990105) .......................................... 3-34

Accessibility of Personal Computers for

Adults with Significant Cognitive

Disabilities: Development and FieldTesting of Assistive Software for Personal

Management (H133G80095) ...................... 3-43

Acupuncture as an Adjunctive Treatment

in Stroke Rehabilitation (H133G000120) .. 2-84

Aging and Adjustment After Spinal Cord

Injury: A Twenty-Five-Year Longitudinal

Study (H133G70111) .................................. 2-68

Amantadine to Improve Neurorecovery in

TBI (H133G80025) .................................... 2-62

Building Comprehensive Behavioral

Support: Bridging the Gap

(H133G80116) ............................................ 4-29

Catecholaminergic Modulation of Working

Memory in Traumatic Brain Injury: An

fMRI Study of the Effects of D2

Dopaminergic and Alpha-2 Adrenergic

Agonistics (H133G000136)........................ 2-82

Closed Captioning and Audio Description:

Development and Testing for Access to

Digital Television (H133G80050) .............. 3-33

Community Reintegration and Quality of

Life Following Traumatic Brain Injury

(H133G990221) .......................................... 2-85

Comparison of Two Employment Models

for Consumers with Severe Mental Illness

(H133G90155) ............................................ 1-18

Consumers’ Participation in Nursing Home

Decisionmaking Preferences and

Perceptions (H133G000068) ...................... 2-73

Creating Permanent Behavioral Health

Access for Rural Missourians with TBI:

Teleconferencing Application for

Improved Services (H133G80033)............. 2-78

Daily Living Context and Pressure Sores in

Consumers with Spinal Cord Injury

(H133G000062) .......................................... 2-65

Determining the Effectiveness of a

Capacity-Building Program for Individuals

with Chronic Fatigue Syndrome

(H133G000097) .......................................... 4-17

Developing a Rehabilitation Service

Delivery Model for Minority Farmers with

Disabilities (H133G000192) ...................... 2-64

Developing and Evaluating an Interactive

Tool to Support Literacy Learning in

Adolescents with Severe Speech and

Physical Impairments (H133G990501) ...... 2-79

Developing the Capacity of Minority

Communities to Promote the

Implementation of the Americans with

Disabilities Act (H133G80074).................... 7-1

Development and Commercial Transfer of

a Tactile Image Printer (TIP)

(H133G80103) ............................................ 3-32

Development and Dissemination of a

Questionnaire and Method to Evaluate

Customer Satisfaction with Rehabilitation

(H133G80023) ............................................ 1-17

Development of a Consumer-Responsive

Resource on Assistive Technology

Information (H133G80048)........................ 6-15

Development of a Rehabilitator for Arm

Therapy After Brain Injury

(H133G80052) ............................................ 3-28

Development of a Transitional OrthoTherapeutic Walker (TOTWalker) for

Preschool Children with Physical

Disabilities (H133G990103) ...................... 3-19

The Development of a Valid System for

Measuring Rehabilitation Service

Outcomes (H133G990137) ........................ 4-18

Development of an Individualized

Marketing Strategy for Job Development

for People with Severe Disabilities

(H133G80030) ............................................ 1-16
E- 5 Projects by Program Type

Direct Brain Interface for Control of

Assistance Technology (H133G70120) ...... 3-37

A Direction Finding, Beam Forming (DFBF) Conference Microphone System

(H133G70122) ............................................ 3-39

Disability Law Knowledge Management

System: A One-Stop Clearinghouse for

Disability Information (H133G000221) ..... 6-13

Disability Rights and the Independent

Living Movement: The Formative Years

Nationwide (H133G000083) ........................ 5-7

The Effect of Ankle-Foot Orthotic Design

on Hemiplegic Gait (H133G000004) ......... 3-17

Effect of Motor Learning Procedures on

Brain Reorganization in Subjects with

Stroke (H133G80041) ................................ 2-77

Effectiveness of a System that Includes

Computer-Based Monitoring in Promoting

Care Among Older Persons with Physical

Disabilities (H133G990086) ...................... 4-26

The Empowerment Project: Promoting

Equality for People with Disabilities

Through Electoral Participation

(H133G990188) ............................................ 5-6

Enhancement of Upper Limb Functional

Recovery in Stroke Using a ComputerAssisted Training Paradigm

(H133G80063) ............................................ 2-69

Enhancing Consumer-Counselor Working

Relationships in Rehabilitation: An

Empirical Research Investigation of

Counselor Expectancies and Working

Alliance as Variables for Optimizing

Consumer-Counselor Relationships,

Consumer Satisfaction, and Rehabilitation

Outcomes (H133G80135) .......................... 1-28

Equiprecise Measurement for ICIDH-2

Classification of Activity: An Innovative

Solution for Evaluating the Worldwide Incidence and Prevalence of Disability

(H133G990167) ............................................ 5-8

Evaluation of Voucher Alternatives for

Early Intervention Developmental

Disability Services (H133G80121) ............ 4-14

Exploratory Study of the Relationship

Between Sustained Employment and

Psychosocial Adjustment of People with

Psychiatric Disabilities (H133G80124)...... 1-19

Exploring Universal Design: Developing

and Disseminating Universal Design

Education Material Online

(H133G000025) .......................................... 6-16

A Family Intervention Following

Traumatic Brain Injury in Children

(H133G990069) .......................................... 4-27

Functional Assessment in Rehabilitation

Software Conversion (FAIR/SC)

(H133G80099) ............................................ 1-26

Functional, Physiologic, and Immunologic

Outcomes of Quantitative Progressive

Exercise Rehabilitation of the Lower

Extremities in Juvenile Arthritis: A Pilot

Study (H133G70156) ................................. 2-83

Geographic Information System

Community Resource Mapping

(H133G990132) .......................................... 3-41

Health Promotion for Women Aging with

Disability (H133G000226) ......................... 2-90

Hippocampal Dysfunction Following TBI:

A Functional and Volumetric MRI Study of

Memory Loss and Recovery

(H133G70031) ............................................ 2-81

Home-Based Video-Counseling for Rural

At-Risk Adolescents with Epilepsy and

Their Parents: An Accessibility and

Outcome Analysis (H133G990500) ........... 4-15

Identifying Social Integration Needs

During Transition to Adulthood Following

Traumatic Brain Injury (H133G000038).... 4-21

The Impact of Managed Care on

Rehabilitation Services and Outcomes for

Persons with Spinal Cord Injury

(H133G990220) .......................................... 2-86

Independent Living for People with

Psychiatric Disabilities: Using Contextual

Cues to Remove Environmental Barriers

(H133G000152) .......................................... 4-19

The Influence of Real-Time Frequency

Transposition on the Recognition and

Understanding of Speech by Adults Who

Are Hearing Impaired (H133G000188) ..... 3-31

Integrated Services and Parent Partnerships

in Schools: Meeting the Needs of Children

with Emotional and Behavioral Disabilities

and Their Families (H133G70013) ............ 4-16
E-6 Projects by Program Type

Interventions to Improve Memory in

Patients with Multiple Sclerosis

(H133G990058) .......................................... 2-87

A Knowledge Dissemination Project to

Enhance the Transfer of Rehabilitation

Engineering and Assistive Technologies to

People with Disabilities (H133G80077) .... 6-14

The Learning and Transfer of Prosthetic

Control (H133G000024) ............................ 3-23

Louisiana’s Self-Determination Research

Project (H133G990169) ............................. 4-20

Marketing Health Promotion, Wellness,

and Risk Information to Spinal Cord Injury

Survivors in the Community

(H133G80011) ............................................ 2-66

Measuring Employer Openness to Hiring

People with Disabilities: Development of

Expanded Labor Market Survey

(H133G000028) .......................................... 1-23

Measuring Functional Communication:

Multicultural and International

Applications (H133G70055) ...................... 2-74

Medication Management and Successful

Work Transition in Persons with HIV/AIDS

(H133G000195) .......................................... 1-22

The Mentor Project: Exemplary Practices

for Developing Supportive Mentor-Protégè

Relationships via the Internet for People

with Significant Physical and Speech

Disabilities (H133G80044) ........................ 3-44

Middle School Phonemic Awareness Study

(H133G000142) .......................................... 4-34

Mild Traumatic Brain Injury in High

School Football (H133G70087) ................. 2-72

A Multi-Level Analysis of the Relationship

Between Domestic Violence and Disability

(H133G990144) .......................................... 5-10

National Study on the Impact of SSI

Redetermination of 18-Year-Old Youth

with Disabilities on Employment,

Independent Living, and Community

Participation Outcomes (H133G000201) ... 4-23

Neuromuscular Reorganization to Improve

the Control of Artificial Limbs

(H133G990074) .......................................... 3-29

Neuropsychological Functioning and

Psychosocial Adjustment in Adolescents

with Spina Bifida and NLD

(H133G000134) .......................................... 4-28

Novel Prosthetic Foot Design Method to

Improve Metabolic Efficiency of BK

Amputee Gait (H133G70038) .................... 3-45

Optimizing Assistive Technology Service

with Video Teleconferencing

(H133G990087) .......................................... 3-20

Optimizing Posture, Trunk Control, and

Reach of Wheelchair Users

(H133G990048) .......................................... 3-40

Optimizing the Conditions for Reading

with the Periphery of the Visual Field

(H133G990003) .......................................... 3-22

PALS: Postsecondary Adjustment, Literacy,

and Socialization for Secondary Students

with Mild/Moderate Disabilities

(H133G70050) ............................................ 4-31

The Parenting Options Project: A

Development Project for Parents with

Psychiatric Disabilities (H133G70079)...... 2-75

Parents with Disabilities and Their

Adolescent Children (H133G990130)........ 4-12

Personalized Synthetic Speech Using

ModelTalker: Development and Evaluation

(H133G990182) .......................................... 3-24

The Physiologic Basis of Functional

Electrical Stimulation on Muscle Atrophy

in Acute Spinal Cord Injury

(H133G80100) ............................................ 2-88

Policy Barriers for People with Long Term

Mental Illness Who Want to Work

(H133G80031) ............................................ 1-15

Powered Mobility and Young Children

with Disabilities: A Multicenter Trial to

Determine the Cognitive and Coping

Factors That Predict Wheelchair Skill

Level (H133G60183).................................. 3-16

Preventing Severe Behavior Problems

(H133G980104) .......................................... 4-25

Project PATH (Promoting Access,

Transition, and Health) (H133G000150) ... 2-80

Promoting the Practice of Universal Design

(H133G80060) ............................................ 3-42

Quality of Life for Persons with a Spinal Cord

Injury: A Qualitative Longitudinal Study

(H133G990219) .......................................... 4-22
E- 7 Projects by Program Type

Re-Defining Wholeness: Formulating A

Minority Group Model of Disability

Identity Development (H133G990110) ........ 5-9

A Refreshable Braille/Tactile Graphics

Display for Human-Computer Interaction

(H133G990049) .......................................... 3-21

The Relationship Between Early

Experiences and Development in Young

Children with Severe Visual Impairments:

A Cross-Cultural Perspective

(H133G80119) ............................................ 4-13

Repetitive Intensive Training Exercise:

Effect on Upper Extremity Motor Function

in Spasticity (H133G000058) ..................... 2-76

Resolving ADA Employment

Discrimination Charges (H133G000132)... 1-24

Robust, Low-Cost, Refreshable Braille

Display (H133G000047) ............................ 3-18

Secondary Prevention Trial of Exercise and

Diet for Improvement of Physical Fitness,

Independence, and Overall Health in Adult

Paraplegics (H133G990143) ...................... 2-71

Seeking, Screening, Evaluating, Describing,

and Disseminating Approaches Used by

Two-Year Colleges to Serve Rehabilitation

Services Clients with Severe/Multiple Functional Limitations in Highly Effective Ways

(H133G70073) ............................................ 6-17

The Self-Employment Experience:

Learning About Entrepreneurs with

Disabilities to Build Models for Improving

Self-Employment Outcomes

(H133G70064) ............................................ 1-20

Self-Employment Technology Transfer

(SETT) (H133G000189) ............................ 1-21

Self-Esteem and Women with Physical

Disabilities (H133G990039) ...................... 4-33

Specifying the Facilitative Effects of

Animation on the Understanding of Action

Word Representatives (H133G990115)...... 3-25

The SPIRATE Project (Spinal Injury Risk

Assessment for ThromboEmbolism)

(H133G990046) .......................................... 2-70

Survey of Home Ownership Nationwide

(H133G000034) .......................................... 4-24

Telerehabilitation to Support Assistive

Technology (H133G990133) ...................... 3-27

Testing the Effectiveness of School-toWork Transition Services for Youth with

Serious Emotional Disturbances

(H133G80084) ............................................ 1-27

Total Access: An Innovative System to

Provide Destination Accessibility

Information for Children and Adults with

Disabilities (H133G980013) ...................... 6-12

Toward a Risk Adjustment Methodology for

People with Disabilities (H133G70072) .... 2-67

Training Material for Blind Computer

Users (H133G990195) ................................ 3-30

The Transition of Pediatric Burn Survivors

into Adulthood (H133G990052) ................ 4-32

Traumatic Brain Injury Rehabilitation:

The Argentina Project (H133G000154) ..... 2-89

An Upper Limb Orthosis for People with

Muscular Dystrophy (H133G000117) ........ 3-26

Use of Propranolol to Manage Behavioral

Dysfunction and Agitation in Persons with

Postacute Brain Injury (H133G000072)..... 2-63

The Use of Virtual Reality Technology for

Assessment of Driving Skills Following

Acquired Brain Injury (H133G000073) ..... 3-38

Variables Associated with Vocational

Success Among Persons with Severe

Mental Illness: An Empirical Study

(H133G990036) .......................................... 1-25

Women’s Personal Assistance Services

(PAS) Abuse Research Project

(H133G70154) ............................................ 4-30

Word for Word: Developing an Enhanced

Tool for Individuals with Disabilities

(H133G000204) .......................................... 3-36

Model Spinal Cord Injury Systems

Demonstration of a Model Spinal Cord

Injury System Center (H133N000023) ...... 2-39

Georgia Regional Spinal Cord Injury Care

System (H133N000005) ............................. 2-32

Missouri Model Spinal Cord Injury System

(H133N000012) .......................................... 2-36

Model Construct for Community

Integration in SCI (H133N50024) .............. 2-44

Model Spinal Cord Injury System

(H133N50007) ............................................ 2-40
E-8 Projects by Program Type

Model Spinal Cord Injury System

(H133N000007) .......................................... 2-29

Mount Sinai Spinal Cord Injury Model

System (H133N000027) ............................. 2-38

The New England Regional Spinal Cord

Injury Center (H133N000024) ................... 2-33

Northern New Jersey Spinal Cord Injury

System (H133N000022) ............................. 2-37

Northwest Regional Spinal Cord Injury

System (H133N000003) ............................. 2-43

Regional Spinal Cord Injury Care System

of Southern California (H133N000029)..... 2-28

The Rocky Mountain Regional Spinal

Injury System (H133N000001) .................. 2-30

South Florida Regional Spinal Cord Injury

Model System (H133N000017) ................. 2-31

Southeastern Michigan Spinal Cord Injury

System (H133N50006) ............................... 2-35

Texas Model Spinal Cord Injury System

(H133N000004) .......................................... 2-41

UAB Model Spinal Cord Injury Care

System (H133N000016) ............................. 2-27

University of Michigan Model Spinal Cord

Injury Care System (H133N000009).......... 2-34

VCU Model Spinal Cord Injury Center

(H133N000015) .......................................... 2-42

NIDRR Contracts

Technical Support for Computer and Other

Related Activities (ED-98-CO-0004)......... 8-27

Rehabilitation Engineering Research Centers

(RERCs)

Rehabilitation Engineering and Research

Center (RERC) on Universal Design and

the Built Environment at Buffalo

(H133E990005) ............................................ 3-8

Rehabilitation Engineering Research

Center: Improved Technology Access for

Land Mine Survivors (H133E980031) ......... 3-4

Rehabilitation Engineering Research Center

on Assistive Technology for Older Persons

with Disabilities (H133E60006) ................... 3-6

Rehabilitation Engineering Research

Center on Communication Enhancement

(H133E980026) .......................................... 3-10

Rehabilitation Engineering Research

Center on Ergonomic Solutions for

Employment (H133E980007) ...................... 3-5

Rehabilitation Engineering Research

Center on Hearing Enhancement and

Assistive Devices (H133E980010)............... 3-9

Rehabilitation Engineering Research

Center on Information Technology Access

(H133E980008) .......................................... 3-13

Rehabilitation Engineering Research

Center on Prosthetics and Orthotics

(H133E980023) ............................................ 3-3

Rehabilitation Engineering Research

Center on Technology Transfer

(H133E980024) ............................................ 3-7

Rehabilitation Engineering Research

Center on Telecommunication Access

(H133E990006) .......................................... 3-14

Rehabilitation Engineering Research

Center on Telerehabilitation

(H133E990007) ............................................ 3-2

Rehabilitation Engineering Research

Center on Wheeled Mobility

(H133E990001) .......................................... 3-12

Rehabilitation Engineering Research

Center (RERC) on Universal Design and

the Built Environment (H133E990002) ..... 3-11

Technologies for Children with Orthopedic

Disabilities (H133E003001) ......................... 3-1

Rehabilitation Research and Training Centers

(RRTCs)

Access to Rehabilitation and

Empowerment Opportunities for Minority

Persons with Disabilities (H133B000903) ... 2-7

Aging with Spinal Cord Injury (SCI)

(H133B70011) .............................................. 2-3

American Indian Rehabilitation Research

and Training Center (H133B980049) ........... 5-1

Disability Statistics Rehabilitation

Research and Training Center

(H133B980045) ............................................ 5-2

Managed Health Care for Individuals with

Disabilities (H133B70003)........................... 2-5

Missouri Arthritis Rehabilitation Research

and Training Center (MARRTC)

(H133B980022) .......................................... 2-10
E- 9 Projects by Program Type

The MRI/Penn Training Center on

Vocational Rehabilitation Services for

Persons with Long-Term Mental Illness

(H133B70007) ............................................ 1-10

Multiple Sclerosis Rehabilitation Research

and Training Center (H133B980017) ......... 2-13

National Center for the Study of

Postsecondary Educational Supports:

A Rehabilitation Research and Training

Center (H133B980043) ................................ 1-4

National Rehabilitation Research and

Training Center for Children with

Disabilities with Special Health Care Needs

(H133B001200) ............................................ 2-6

Rehabilitation Research and Training

Center for Children’s Mental Health

(H133B990022) ............................................ 4-3

Rehabilitation Research and Training

Center for Community Integration of

Persons with Mental Retardation

(H133B980047) ............................................ 4-6

Rehabilitation Research and Training

Center for Economic Research on

Employment Policy for Persons with

Disabilities (H133B980038)......................... 1-8

Rehabilitation Research and Training

Center for Persons Who Are Deaf or Hard

of Hearing (H133B60002) ............................ 1-1

Rehabilitation Research and Training

Center in Community Integration for

Individuals with Spinal Cord Injury

(H133B40011) ............................................ 4-10

Rehabilitation Research and Training

Center in Neuromuscular Diseases

(H133B980008) ............................................ 2-2

Rehabilitation Research and Training

Center in Rehabilitation of Persons with

Long Term Mental Illness (H133B990023) . 4-5

Rehabilitation Research and Training

Center on Aging with a Disability

(H133B980024) ............................................ 2-4

Rehabilitation Research and Training

Center on Aging with Developmental

Disabilities (H133B980046)......................... 2-8

Rehabilitation Research and Training

Center on Blindness and Low Vision

(H133B60001) .............................................. 1-6

Rehabilitation Research and Training

Center on Community Rehabilitation

Programs to Improve Employment

Outcomes (H133B980040) ......................... 1-12

Rehabilitation Research and Training

Center on Drugs and Disability

(H133B70018) .............................................. 1-9

Rehabilitation Research and Training

Center on Full Participation in Independent

Living (H133B000500) ................................ 4-4

Rehabilitation Research and Training

Center on Health and Wellness for Persons

with Long-Term Disabilities

(H133B990019) .......................................... 2-11

Rehabilitation Research and Training

Center on Independent Living Management

(RRTC-ILM) (H133B000002) ..................... 4-7

Rehabilitation Research and Training

Center on Measuring Rehabilitation

Outcomes (H133B990005) ........................... 5-4

Rehabilitation Research and Training

Center on Personal Assistance Services

(PAS) (H133B70008) ................................... 4-1

Rehabilitation Research and Training

Center on Policies Affecting Families of

Children with Disabilities

(H133B980050) ............................................ 5-3

Rehabilitation Research and Training

Center on Positive Behavioral Support

(H133B980005) ............................................ 4-2

Rehabilitation Research and Training

Center on Rehabilitation Interventions

Following Traumatic Brain Injury

(H133B990014) .......................................... 2-12

Rehabilitation Research and Training

Center on Rural Rehabilitation Services

(H133B70017) .............................................. 1-7

Rehabilitation Research and Training

Center on Secondary Conditions of Spinal

Cord Injury: Promoting General Health,

Well-Being, and Community Integration

Through Home-Based, Self-Directed Care

(H133B980016) ............................................ 2-1

Rehabilitation Research and Training

Center on State Systems and Employment

(H133B980037) ............................................ 1-5
E-10 Projects by Program Type

Rehabilitation Research and Training

Center on Stroke Rehabilitation

(H133B980021) ............................................ 2-9

Rehabilitation Research and Training

Center on the Community Integration of

Individuals with Traumatic Brain Injury

(H133B980013) ............................................ 4-8

Rehabilitation Research and Training

Center on Workforce Investment and

Employment Policy for Persons with

Disabilities (H133B980042)......................... 1-3

Rehabilitation Research and Training

Center on Workplace Supports

(H133B980036) .......................................... 1-11

Rehabilitation Research and Training

Center to Improve Services for Children

with Serious Emotional and Behavioral

Disabilities and Their Families

(H133B990025) ............................................ 4-9

Research and Training Center For Persons

Who Are Hard of Hearing or Late

Deafened (H133B70016).............................. 1-2

UIC National Research and Training

Center on Psychiatric Disability

(H133B000700) ............................................ 8-1

Small Business Innovative Research (SBIR

Phase I)

Computer-Based Multimedia Interactive

“E-Entrepreneur” Training for Individuals

with Disabilities (ED-00-PO-3953)............ 1-30

A Computerized Worker-Job Assessment to

Access Assistive Technology Information

for the Workplace (ED-00-PO-3935) ......... 3-51

Conception, Design, and Implementation

of an Audio/Tactile Atlas of the World for

Use by Students Who are Blind or Visually

Impaired and Others (ED-00-PO-3854) ..... 3-54

Development of Noise-based Devices That

Enhance Somatosensory Function (ED-00-

PO-3779) .................................................... 3-55

Fair and Appropriate Community

Employment (FACE): A Management

Information System (MIS) for Evaluating

Impact of Employment Programs on

Persons with Disabilities (ED-00-PO3955) ........................................................... 1-31

Gesture Recognition System for Personal

Computing Applications (ED-00-PO3587) ........................................................... 3-49

Graph And Print (GAP) (ED-00-PO3782) ........................................................... 3-58

Interactive Multimedia to Facilitate the

School-to-Work Transition of Secondary

Students and Young Adults with

Disabilities (ED-00-PO-3586) .................... 3-59

Internet-Based Presentation of Role

Models for Youth in Transition from

School to Work (ED-00-CO-3590)............. 1-29

A Low-Cost, High-Performance Physical

Activity Monitor (PAM) (ED-00-PO3741) ........................................................... 3-57

A Modular Desktop Manipulator (ED-99-

PO-4636) .................................................... 3-52

Multi-Lingual Web Tutorial (ED-00-PO4009) ........................................................... 3-46

NutriNet: An Internet Based Self-Directed

Multimedia Nutritional Planning and

Grocery Shopping System for Individuals

with Mental Retardation (ED-00-PO3951) ........................................................... 4-35

Omnidirectional Wheelchair to Increase

the Mobility of Persons with Physical

Disabilities (ED-00-PO-3781) .................... 3-56

Personal Scanner: A Hand-held Device

That Speaks the Information Displayed on

Common Office Equipment (ED-00-PO3843) ........................................................... 3-47

QwikClick - An Intelligent Scanning

Keyboard that Maximizes the Capability of

Single-Switch Users (ED-00-PO-3784) ..... 3-48

Testing Vision in Young Deaf Children

(ED-00-R-0013) ......................................... 3-50

Writing Rehabilitation System with

Dynamic Analysis Tools (ED-00-PO-3857)3-53

Small Business Innovative Research (SBIR

Phase II)

AbilityForum.com (ED-00-PO-0219) ........ 1-32

Automated PC-Based Speech-to-SignLanguage Interpreter (ED-99-CO-0116) .... 3-60

A Computer Program to Emulate TTY

Communication (ED-99-CO-0117) ............ 3-61
E- 11 Projects by Program Type

Strategies for Test Success: A CD-ROM

for Students with Learning Disabilities

(ED-99-CO-0125)....................................... 4-37

Trails Web Site with Universal Access

Information (ED-98-CO-0046) .................. 6-18

Visual Assistant: A Portable Multimedia

Training System for Community-Based

Skill Development for Individuals with

Mental Retardation (ED-99-CO-0124) ...... 4-36

State Technology Assistance Projects

Alabama Statewide Technology Access and

Response Project (STAR) System for

Alabamians with Disabilities

(H224A30009) ............................................ 9-11

American Samoa Assistive Technology

Service (ASATS) Project (H224A30014) .. 9-13

Arizona Technology Access Program

(AzTAP) (H224A40002) ............................ 9-14

Arkansas Increasing Capabilities Access

Network (ICAN) (H224A90020) ............... 9-15

Assistive Technologies of Alaska

(H224A990001) .......................................... 9-12

Assistive Technology for Kansans Project

(H224A30013) ............................................ 9-29

Assistive Technology of Ohio (AT-OHIO)

(H224A40001) ............................................ 9-49

Assistive Technology Resource Centers of

Hawaii (ATRC) (H224A10023) ................. 9-24

ATTAIN Inc. (Assistive Technology

Through Action in Indiana)

(H224A00027) ............................................ 9-27

California Assistive Technology System

(CATS) (H224A30008) .............................. 9-16

Colorado Assistive Technology Project

(CATP) (H224A40014) .............................. 9-17

Commonwealth of the Northern Mariana

Islands (CNMI) Assistive Technology

Project - System of Technology-Related

Assistance for Individuals with Disabilities

(STRAID) (H224A40007) .......................... 9-48

Connecticut Assistive Technology Project

(H224A20013) ............................................ 9-18

Delaware Assistive Technology Initiative

(DATI) (H224A10005) ............................... 9-19

Florida Alliance for Assistive Service and

Technology (FAAST), Inc.

(H224A000001) .......................................... 9-21

Georgia Tools for Life

(H224A10001) ............................................ 9-22

Guam System for Assistive Technology

(GSAT) (H224A40003) .............................. 9-23

Idaho Assistive Technology Project

(H224A20017) ............................................ 9-25

Illinois Assistive Technology Project

(H224A90038) ............................................ 9-26

Iowa Program for Assistive Technology

(H224A00028) ............................................ 9-28

Kentucky Assistive Technology Services

(KATS) Network (H224A90002) ............... 9-30

Louisiana Assistive Technology Access

Network (LATAN) (H224A10028) ............ 9-31

Maine Consumer Information and

Technology Training Exchange (Maine

CITE) (H224A90047) ................................ 9-32

Maryland Technology Assistance Program

(MD TAP) (H224A90019) ......................... 9-33

Massachusetts Assistive Technology

Partnership (H224A00036) ........................ 9-34

Michigan AT Project (H224A50009) ......... 9-35

Minnesota System of Technology to

Achieve Results (STAR) Program

(H224A90041) ............................................ 9-36

Mississippi Project START (Success

Through Assistive/Rehabilitative

Technology) (H224A00032)....................... 9-37

Missouri Assistive Technology Project

(H224A30015) ............................................ 9-38

MonTECH (H224A10002) ......................... 9-39

Nebraska Assistive Technology Partnership

(H224A90040) ............................................ 9-40

Nevada Assistive Technology Collaborative

(H224A00037) ............................................ 9-41

New Hampshire Technology Partnership

Project (H224A10015) ............................... 9-42

New Jersey Technology Assistive Resource

Program (TARP) (H224A20007) ............... 9-43

New Mexico Technology Assistance

Program (NMTAP) (H224A00017) ............ 9-44

New York State Technology-Related

Assistance of Individuals with Disabilities

(TRAID) Project (H224A00041) ............... 9-45
E-12 Projects by Program Type

North Carolina Assistive Technology

Project (H224A00010) ............................... 9-46

North Dakota Interagency Program for

Assistive Technology (IPAT)

(H224A30003) ............................................ 9-47

Oklahoma ABLE Tech (H224A50007) ...... 9-50

Oregon Technology Access for Life Needs

(TALN) (H224A50002) .............................. 9-51

Pennsylvania’s Initiative on Assistive

Technology (PIAT) (H224A20006) ............ 9-52

Puerto Rico Assistive Technology Project

(H224A70001) ............................................ 9-53

Rhode Island Assistive Technology Access

Partnership (ATAP) (H224A30012) ........... 9-54

South Carolina Assistive Technology

Program (SCATP) (H224A60001) ............. 9-55

South Dakota Assistive Technology

Project (DakotaLink) (H224A20019) ........ 9-56

Tennessee Technology Access Project

(TTAP) (H224A00003) .............................. 9-57

Texas Assistive Technology Partnership

(H224A20012) ............................................ 9-58

U.S. Virgin Islands Technology-Related

Assistance for Individuals with Disabilities

(TRAID) (H224A50005) ............................ 9-59

University Legal Services AT Program

for the District of Columbia

(H224A30001) ............................................ 9-20

Utah Assistive Technology Program

(UATP) (H224A90051) .............................. 9-60

Vermont Assistive Technology Project

(H224A00023) ............................................ 9-61

Virginia Assistive Technology System

(VATS) (H224A00009) ............................... 9-62

Washington Assistive Technology

Alliance (WATA) (H224A30006)............... 9-63

West Virginia Assistive Technology

System (WVATS) (H224A20011) .............. 9-64

WisTech (H224A00013) ............................. 9-65

Wyoming’s New Options in Technology

(WYNOT) (H224A60002) ......................... 9-66

Utilization Projects

ABLEDATA Database Program

(HN96015001) .............................................. 6-6

National Rehabilitation Information Center

(NARIC) (ED-99-CO-0057)......................... 6-7