2006

NIDRR Program Directory

Fiscal Year 2006

Produced by The National

Rehabilitation Information

Center

A project funded by The National Institute on Disability and Rehabilitation Research, project number ED-05-CO-0007.

National Institute on Disability and Rehabilitation Research

Program Directory 2006

Produced by the

National Rehabilitation Information Center

Lanham, MD

Mark X. Odum

Director

Jessica H. Chaiken

Media and Public Education Manager

Catherine E. Graves

Media Specialist
The full text of this public domain publication is available at the NARIC’s home page at http://

www.naric.com and in alternate formats upon request. For more information, please contact us at:

NARIC

4200 Forbes Boulevard, Suite 202

Lanham, MD 20706

800/346-2742 or 301/459-5900 (Voice)

or 301/459-4263 (TTY).
Contents

Introduction .....................................................................................................i

Research and Development:

Employment .................................................................................................... 1

Health and Function ........................................................................................ 2

Technology for Access and Function ............................................................. 3

Participation and Community Living ............................................................... 4

Disability Demographics ................................................................................. 5

Knowledge Translation

Knowledge Translation.................................................................................... 6

ADA Technical Assistance .............................................................................. 7

Capacity Building

Capacity Building for Rehabilitation Research Training ..............................8

Introduction 1

Introduction

The mission of the National Institute on Disability and Rehabilitation Research (NIDRR) is to generate, disseminate, and promote knowledge that will improve the lives of persons with disabilities in their

communities. NIDRR conducts comprehensive and coordinated programs of research and related

activities to assist in the achievement of the full inclusion, social integration, employment, and independent living of people with disabilities. This edition of the NIDRR Program Directory lists all projects

funded by NIDRR during the 2006 fiscal year.

The contextual paradigm of disability and rehabilitation research, as described in NIDRR’s Long

Range Plan, 1999-2003, continues to frame the NIDRR research agenda. This paradigm overcomes

the limitations imposed by a medical model of disability. The new paradigm of disability maintains that

“disability is a product of the interaction between characteristics of the individual (e.g., conditions or

impairments, functional status, or personal and social qualities) and the characteristics of the natural,

built, cultural, and social environments.” (NIDRR Long-Range Plan 1999-2003.)

NIDRR’s Research Program

Under the Long Range Plan for 2005, NIDRR-funded research activities fall within three contextual domains: Research and Development, Capacity Building, and Knowledge Translation. Within these arenas,

NIDRR’s research is conducted via a network of individual research projects and centers of excellence

throughout the country. Most NIDRR grantees are universities or providers of rehabilitation or related

services. NIDRR’s largest funding programs are the Rehabilitation Research and Training Centers (RRTCs),

the Model Systems, and Rehabilitation Engineering Research Centers (RERCs). NIDRR also makes

awards for information dissemination and utilization centers and projects, field initiated projects, research

and development projects, advanced research training projects, Mary E. Switzer fellowships and NIDRR

scholars, small business innovative research, and model systems of care. NIDRR also administers the

Disability and Business Technical Assistance Centers.

Disability and Rehabilitation Research Projects

The Disability and Rehabilitation Research Projects (DRRP) program allows for projects with special

emphasis on research, demonstrations, training, dissemination, utilization, and technical assistance.

Projects may include combinations of these activities. True to the mission of NIDRR, these projects

may develop methods, procedures, and rehabilitation technology to assist in achieving the full inclusion and integration into society, employment, independent living, family support, and economic and

social self-sufficiency of individuals with disabilities, especially individuals with the most significant

disabilities, or to improve the effectiveness of services authorized under the Rehabilitation Act.

Model Systems

NIDRR administers programs that have become world-renowned model systems of care for persons

with spinal cord injuries, burns, and traumatic brain injuries. The Model Systems establish innovative

projects for the delivery, demonstration, and evaluation of comprehensive medical, vocational, and

other rehabilitation services. The work of the Model Systems begins at the point of injury and ends

with successful re-entry into full community life. These projects collect and contribute data on patient
2 Introduction

characteristics, diagnoses, causes of injury, interventions, outcomes, and costs to a uniform national database; participate in collaborative research with other Model System centers; and coordinate research efforts

with other related grant recipients. In 2006, NIDRR funded a coordinating knowledge translation center for

all three Model System types.

Advanced Rehabilitation Research Training Projects

The Advanced Rehabilitation Research Training (ARRT) Program (formerly known as the Research

Training Grants Program) expands the capacity of the field of rehabilitation research by providing

advanced training opportunities. These projects provide rehabilitation research training for persons

with clinical or other experience, who may be lacking certain formal research training. Grants are made

to institutions to recruit qualified persons with doctoral or similar advanced degrees with clinical,

management, or basic science research experience, and prepare them to conduct independent research

on problems related to disability and rehabilitation. This research training may integrate disciplines,

teach research methodology in the environmental or new paradigm context, and promote the capacity

for Disability Studies and rehabilitation science. These training programs must operate in interdisciplinary environments and provide training in rigorous scientific methods.

Rehabilitation Research and Training Centers

NIDRR’s Rehabilitation Research and Training Centers (RRTCs) conduct coordinated and integrated

advanced programs of research targeted toward the production of new knowledge, which may improve rehabilitation methodology and service delivery systems, alleviate or stabilize disabling conditions, or promote maximum social and economic independence for persons with disabilities. Operated

in collaboration with institutions of higher education or providers of rehabilitation or other appropriate

services, RRTCs serve as centers of national excellence in rehabilitation research. Also, they are

national or regional resources for research information for individuals with disabilities and the parents,

family members, guardians, advocates, or authorized representatives of the individuals. These centers

also conduct related training programs, including graduate, pre-service and in-service training. The

centers also disseminate and promote the utilization of research findings.

Rehabilitation Engineering Research Centers

Rehabilitation Engineering Research Centers (RERCs) conduct programs of advanced research of an

engineering or technical nature designed to apply advanced technology, scientific achievement, and

psychological and social knowledge to solve rehabilitation problems and remove environmental

barriers. Each center is affiliated with one or more institutions of higher education or nonprofit organizations. The RERCs’ work in a rehabilitation setting provides an environment for cooperative research

and the transfer of rehabilitation technologies into rehabilitation practice. Involved at both the individual and systems levels, RERCs seek to find and evaluate the newest technologies, products, and

methods that ultimately can benefit the independence of persons with disabilities and the universal

design of environments for all people of all ages. The centers also exchange technical and engineering

information worldwide and improve the distribution of technological devices and equipment to individuals who need them.
Introduction 3

Fellowships

Fellowships, named for the late Mary E. Switzer, give individual researchers the opportunity to develop new ideas and gain research experience. There are two levels of fellowships: Distinguished

Fellowships and Merit Fellowships. Distinguished Fellowships go to individuals of doctorate or

comparable academic status, who have had seven or more years of experience relevant to rehabilitation

research. Merit Fellowships are given to persons with rehabilitation research experience, but who do

not meet the qualifications for Distinguished, usually because they are in earlier stages of their careers.

Fellows work for one year on an independent research project of their design.

NIDRR Scholars

The Scholars program attempts to build research capacity by recruiting undergraduates with disabilities

to work in NIDRR-funded Centers and projects and introduces them to disability and rehabilitation

research issues. Scholars gain work experience and participating centers receive a small stipend. This

program is an innovative approach aimed at generating interest in research careers for persons with

disabilities.

ADA Technical Assistance Projects

NIDRR administers a network of grantees to provide information, training, and technical assistance to

businesses and agencies with responsibilities under the Americans with Disabilities Act (ADA). Ten

regional Disability and Business Technical Assistance Centers (DBTACs) are funded to provide

information and referral, technical assistance, public awareness, and training on all aspects of the

ADA. Several National Training Projects target particular groups, organizations, or subject areas for

ADA training and the ADA Technical Assistance coordinator contract assists all of the grantees with

their activities.

Small Business Innovative Research

Small Business Innovative Research (SBIR) grants help support the production of new assistive and

rehabilitation technology. This two-phase program takes a product from development to market readiness.

NIDRR Contracts

Through its contracts, NIDRR seeks improved methods, systems, products, and practices to add to its

work. The contracts are for specific activities related to management, research, and information dissemination.

NARIC and the NIDRR Program Directory

The Program Directory is compiled by the National Rehabilitation Information Center (NARIC).

NARIC functions as NIDRR’s library, providing the rehabilitation community with information and

referral services to help locate pertinent research related to specific areas of expertise. Since 1977,

NARIC has been the primary source of rehabilitation and disability information generated by NIDRR

funds, with special priority services to NIDRR staff and NIDRR-funded project staff.
4 Introduction

NARIC also produces REHABDATA, an index of disability and rehabilitation literature produced by

NIDRR grantees as well as commercial publishers. Copies of NIDRR-supported research products are

received by NARIC and added to the reference collection and REHABDATA database. Information

about holdings are available online at http://www.naric.com.

Neither NARIC nor NIDRR assumes liability for the Directory’s contents or the use thereof. NARIC

does not evaluate or certify the programs or products of the organizations listed in the Directory.

This Directory is not intended for use as a fiscal document to show how NIDRR funds are allocated;

its purpose is to display the range of programs that NIDRR supports. This listing is current as of

November 9, 2005. This directory may include projects that have passed the indicated extension date.

NARIC operates under U.S. Department of Education contract ED-05-CO-0007.
Employment

NIDRR’s employment research focuses on the lifelong challenges to and opportunities

presented by transitions in employment experienced by people with disabilities.

Employment research addresses methods to integrate the unique needs of employers

and disability populations to improve employment outcomes across the life span.

NIDRR’s research agenda in the area of employment is designed to strengthen the

scientific basis of disability and rehabilitation-related research and practice by

increasing the availability of validated theories, measures and methods to: (1) improve

measurement, data sources, and estimates; and (2) enhance identification, evaluation,

and prediction of the factors that facilitate successful labor force participation and

work-related transitions across the life span. This research agenda is also designed to

strengthen the scientific basis of disability-related employment policy, practice, and

research by providing valid and reliable information and analyses designed to: (1)

improve understanding of employment trends; individual labor force participation; and

school-to-work transitions; and (2) enhance knowledge of the broader societal

developments that affect employment opportunities and outcomes across the life span.

Contents

Rehabilitation Research and Training Centers (RRTCs) ............................................................................ 3

Disability and Rehabilitation Research Projects ........................................................................................ 9

Field Initiated Projects (FIPs) ............................................................................................................... 12

NIDRR Program Directory FY 2006 - Employment Outcomes 1-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Arkansas

Rehabilitation Research and Training Center on Improving Vocational

Rehabilitation Services for Individuals Who Are Deaf or Hard of Hearing

University of Arkansas

College of Education and Health Professions

26 Corporate Hill Drive

Little Rock, AR 72205

dwatson@uark.edu

www.uark.edu/deafrtc

Principal Investigator: Douglas Watson, PhD

Public Contact: 501/686-9691; Fax: 501/686-9698

Project Number: H133B010501

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $600,000; FY 02 $600,000; FY 03 $600,000; FY 04 $600,000; FY 05

$600,000; FY 06 $0 (No-cost extension through 9/30/2007)

Abstract: This program conducts coordinated research and training to enhance the rehabilitation outcomes

of persons who are deaf or hard of hearing who are served by VR and related employment programs.

When appropriate, the unique needs of specific subgroups within this diverse and heterogeneous population

are investigated. The ultimate goal of these efforts is to improve the capacity of the VR system and related

programs to address the career preparation, entry, maintenance, and advancement, as well as the community living needs, of the target population. Research activities include: investigating the impact of changes in

federal employment and rehabilitation legislation and policy on the delivery of services to the target population; investigating the impact of business practices that contribute to accessible work and workplace supports to enhance the employment of the target population; and identifying, developing, and assessing rehabilitation-related innovations that enhance employment and community living outcomes of the target

population.
1-4 NIDRR Program Directory FY 2006 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Montana

Rehabilitation Research and Training Center on Disability in Rural

Communities

University of Montana

The University of Montana Rural Institute:

 A Center for Excellence in Disability Research, Education, and Services

52 Corbin Hall

Missoula, MT 59812-7056

rural@ruralinstitute.umt.edu

rtc.ruralinstitute.umt.edu

Principal Investigator: Tom Seekins, PhD 406/243-2654

Public Contact: Diana Spas 888/268-2743 (V); 406/243-5467 (V); 406/243-4200 (TTY); Fax: 406/

243-2349

Project Number: H133B030501

Start Date: December 01, 2002

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $600,000; FY 04 $600,000; FY 05 $600,000; FY 06 $600,000

Abstract: The research conducted by this project improves the employment status of people with disabilities in the rural U.S., enhances their ability to live independently, and advances the science of rural disability

studies. Four core areas comprise eleven research projects in rural employment and economic development; rural health and disability; rural community transportation and independent living; and rural policy

foundations. Projects include: (1) develop scientific methods to measure how rural environments influence an

individual’s community participation; (2) collaborate with very small rural businesses to employ people with

disabilities; (3) improve rural transportation options; and (4) create programs to prevent or improve secondary conditions. Other projects explore ways for new partners, including faith-based organizations, to be

involved in improving rural services. A training program disseminates research findings, trains students, and

sparks the creative engagement of policymakers and social advocates. The innovative STATE (Same-Time

Availability to Everyone) policy requires that the project provide standard print publications to the general

public only when at least two alternative formats are also available to individuals with disabilities.
NIDRR Program Directory FY 2006 - Employment Outcomes 1-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Employment Policy and

Individuals with Disabilities

Cornell University

Employment and Disability Institute

ILR School

201 ILR Extension Building

Ithaca, NY 14853-3901

smb23@cornell.edu

www.ilr.cornell.edu/edi/p-eprrtc.cfm

Principal Investigator: Susanne Bruyère, PhD; Richard Burkhauser, PhD; David Stapleton, PhD

Public Contact: Susanne Bruyère, PhD 607/255-9536 (V); 607/255-2891 (TTY); Fax: 607/255-2763

Project Number: H133B040013

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 04 $700,000; FY 05 $700,000; FY 06 $700,000

Abstract: The ultimate goal of the Employment Policy Rehabilitation Research and Training Center (EPRRTC) is to increase the employment and economic self- sufficiency of people with disabilities and improve

the quality of their lives. The immediate purpose is to contribute to the success of the transition from caretaker policies to economic self-sufficiency policies. Specific goals and objectives are: completion of new

research activities that will generate knowledge about the effects of past disability policy and other factors

on economic self-sufficiency, the impact of current and future initiatives designed to promote economic selfsufficiency, and/or the likely success of new policy options; completion of 20 publishable papers and

companion policy briefs; training of consumers via 12 or more Washington-based Disability Policy Forums;

training of 5 graduate students; a third-year conference; a conference volume; and technical assistance to

consumers on policy research and evaluation methods and data. Short-term project outcomes include:

annual interpretation of updated employment rate trends; a synthesis and critique of many relevant evaluation

efforts; three or more significant policy options and ideas for next steps; reviews of three or more significant

policy or program successes; detailed information on interactions between numerous programs and policies,

and how they discourage employment; estimates of impacts of two public policies on employment and

earnings for state VR clients; estimates of the impact of the ADA on both employer provision of accommodations and job retention after disability onset; estimates of the return to higher education for those with

profound hearing loss; and two additional analyses of the role that human capital plays in determining

economic self-sufficiency for adults with disabilities. Intermediate outcomes include use of this information in

the policy improvement effort, and long-term outcomes include policy changes that increase the economic

self-sufficiency of people with disabilities.
1-6 NIDRR Program Directory FY 2006 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Improving Employment

Outcomes

Hunter College of CUNY

Research Foundation of CUNY

695 Park Avenue

New York, NY 10021

joneil@hunter.cuny.edu

www.essrtc.org

Principal Investigator: John O’Neill, PhD 212/772-5188

Public Contact: Fax: 212/650-3198

Project Number: H133B040014

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 04 $699,981; FY 05 $699,973; FY 06 $699,990

Abstract: This Employment Service Systems Research and Training Center develops, enhances, and

utilizes partnerships to improve the quality of employment services, opportunities, and outcomes for people

with disabilities. Five research projects have been designed to meet this goal and examine partnerships

across public agencies, between not for-profit and public agencies, and between rehabilitation agencies and

businesses. The Consortia for Employment Success (CES) creates and evaluates fully integrated disability

service provider networks in three local communities. The CES increases access for people with disabilities

to both effective, comprehensive placement services, and a well-managed and centralized employer network that will increase employment and career advancement opportunities for persons with disabilities. The

Workplace Socialization Model (WPS) supplements the CES Model by focusing on job enhancement and

retention. The WPS aims to extend the job tenure of employees with a disability and other positive work

outcomes including the employee’s job satisfaction, organizational commitment, and level of work culture

competency, as well as the employer’s satisfaction with the employee’s job performance. Identification of

“Good Practices” Within Vocational Rehabilitation is designed to identify a variety of good practices currently being used in the State-Federal VR system across the U.S. that facilitate consumer access to services

and enhance employment outcomes. Designing and Testing Comprehensive Employment Practice and

Policy Initiatives within a Vocational Rehabilitation State Agency develops and tests a model that leads to

enhanced employment outcomes. The model includes the “human capital” characteristics of persons with

disabilities as well as what vocational rehabilitation delivery systems add to these human capital factors to

improve outcomes. A Study of Disability Navigators in One-Stops collects data on Workforce Investment

Act regions in which Navigators operate and compares levels of customer satisfaction and employment

outcomes between regions that use Navigators and regions that have no such positions.
NIDRR Program Directory FY 2006 - Employment Outcomes 1-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Ohio

Rehabilitation Research and Training Center on Substance Abuse,

Disability, and Employment

Wright State University

School of Medicine; Substance Abuse Resources and Disability Issues (SARDI)

3171 Research Park Boulevard, Room 255

Kettering, OH 45420

mary.mcaweeney@wright.edu

www.med.wright.edu/citar/sardi/rrtc_about.html

Principal Investigator: Dennis C. Moore, EdD

Public Contact: Mary McAweeney 937/775-1484 (V/TTY); Fax: 937/775-1495

Project Number: H133B040012

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 04 $699,998; FY 05 $699,983; FY 06 $699,981

Abstract: This RRTC builds on previous findings to positively impact persons with disabilities who also

experience substance use disorders, as well as the service providers upon whom they depend. The highly

integrated program of research addresses the following goals and objectives: (1) Promote widespread use

of substance use disorder screening among persons with disabilities who utilize disability-related employment services. This is accomplished by developing and validating a new substance abuse screener called the

“SASSI-VR”. Following two stages of development and validation, the SASSI-VR is evaluated in three

vocational rehabilitation (VR) programs on a statewide basis. (2) Conduct a randomized clinical trial of a

model of supported employment, Individualized Placement and Support (IPS), to test its efficacy among

persons with traumatic brain injury or other severe disabilities that also have a substance use disorder. The

two trial sites are affiliated with rehabilitation programs in the Wright State and Ohio State medical schools.

Utilization of the IPS model with the study populations holds tremendous potential or impacting services

delivery for consumers who experience very low rates of employment. (3) Research policy and practices

relative to their impact on VR services for persons with a disability and coexisting substance abuse. Serving

as a critical complement to Rl, the roles of policies, statutes, guidelines, and VR service delivery practices

will be investigated within the larger community of public agencies. (4) Investigate factors that specifically

contribute to unsuccessful case closure among consumers of VR services. This component studies recent

VR unsuccessful closures and their counselors, and the study has particular sensitivity to the role of “hidden”

substance abuse among unsuccessful closures.
1-8 NIDRR Program Directory FY 2006 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Virginia

Rehabilitation Research and Training Center on Workplace Supports and

Job Retention

Virginia Commonwealth University

Rehabilitation Research and Training Center on Workplace Supports

1314 West Main Street, Box 842011

Richmond, VA 23284-2011

tcblanke@vcu.edu

www.worksupport.com

Principal Investigator: Paul Wehman, PhD

Public Contact: Valerie Brooke, Director of Training 804/828-1851 (V); 804/828- 2494 (TTY); Fax:

804/828-2193

Project Number: H133B040011

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 04 $699,981; FY 05 $699,973; FY 06 $699,990

Abstract: The purpose of the RRTC on Workplace Supports and Job Retention is to study those supports

which are most effective in the workplace for assisting persons with disabilities to maintain employment and

advance their careers. Research includes two long-term prospective randomized experimental control

research projects: (1) determining the efficacy of public/private partnerships, and (2) determining the efficacy of business mentoring and career based interventions with college students with disabilities. The RRTC

is partnered with Manpower, Inc., several community rehabilitation programs, and the VCU Business

Roundtable. Additional projects look at disability management practices, extended employment supports,

job discrimination in employment retention, benefits planning and assistance, and workplace supports. These

studies are done in conjunction with Equal Employment Opportunity Commission, the Society of Human

Resource Professionals, and the U.S. Chamber of Commerce.
NIDRR Program Directory FY 2006 - Employment Outcomes 1-9

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Arkansas

Improve the Employment Outcomes for the Low Functioning Deaf

(LFD) Population

University of Arkansas

College of Education and Health Professions

26 Corporate Hill Drive

Little Rock, AR 72205

dwatson@uark.edu

Principal Investigator: Douglas Watson, PhD

Public Contact: 501/686-9691; Fax: 501/686-9698

Project Number: H133A060044

Start Date: January 01, 2007

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 06 $450,000

Abstract: This project conducts a program of theory-driven research to improve employment outcomes for

the Low Functioning Deaf (LFD) population. The goals of the project are to: (1) develop a national profile

of the state of the knowledge for services to persons who are LFD; (2) develop consensus on functional

definitions of the target population using a concept mapping approach with knowledgeable providers who

serve the population; (3) develop and validate a psychometrically sound tool to assess the functional characteristics of persons identified as LFD and to be used by partner states to develop a descriptive profile of the

population; (4) replicate a systems level analysis of service delivery options available to the target population

with key state partners; (5) assess barriers exhibited by LFD and pre-employment skills needed to enter the

workforce; and (6) focus on best practices in job coaching to enhance workplace integration and job

tenure. The success of the research and dissemination efforts is insured by inclusion of five state rehabilitation partners including providers, policy makers, and administrators from vocational rehabilitation, community service agencies, and school and community-based transition programs. The project makes use of longestablished networks and collaboration with key federally-funded partners to facilitate dissemination of

research-based knowledge to the field, leading to improvements in services for persons who are LFD.
1-10 NIDRR Program Directory FY 2006 - Employment Outcomes

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Mississippi

Persons Aging with Hearing and Vision Loss

Mississippi State University

Rehabilitation Research and Training Center on Blindness and Low Vision

P.O. Box 6189

Mississippi State, MS 39762

bjlejeune@colled.msstate.edu

www.blind.msstate.edu

Principal Investigator: B.J. LeJeune, MEd, CVRT, CRC

Public Contact: 662/325-2001; 662/325-8693 (TTY); Fax: 662/325-8989

Project Number: H133A020701

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $500,000; FY 03 $500,000; FY 04 $500,000; FY 05 $500,000; FY 06

$500,000

Abstract: This project investigates strategies to improve outcomes for persons who are over 55 with

hearing and vision loss, especially those who have a sensory disability and acquire a second as a result of

the aging process. The project conducts a variety of research, development, training, and dissemination

activities and evaluates both technology and model service delivery approaches for improving employment

and community integration options. A Participatory Action Research (PAR) Team provides guidance and

direction. The project solicits direct input from key stakeholders as part of the ongoing planning, development, and implementation of research activities. These activities include the use of focus groups, a panel of

experts, and a study sample that includes a nationally representative sample of older individuals who are

blind or visually impaired and losing their hearing, and those who are deaf or hard of hearing and losing their

vision. This is a collaborative project of the Rehabilitation Research and Training Center on Blindness and

Low Vision at Mississippi State University, San Diego State University, and the Helen Keller National

Center for Deaf-Blind Youths and Adults.
NIDRR Program Directory FY 2006 - Employment Outcomes 1-11

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Demand-Side Employment Placement Models

Syracuse University

Burton Blatt Institute

900 South Crouse Avenue

Crouse-Hinds Hall 300

Syracuse, NY 13244

wmyhill@syr.edu

bbi-empdemand.syr.edu/

Principal Investigator: Peter D. Blanck, PhD, JD 315/443-9703

Public Contact: Wiliam N. Myhill, MEd, JD 315/443-1367; Fax: 315/443-9725

Project Number: H133A060033

Start Date: July 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $500,000

Abstract: Americans with disabilities have significantly lower levels of employment than their peers without

disabilities. Prior study of employment rates among people with disabilities generally has relied on a “supplyside” approach, analyzing how personal characteristics predict employment and earnings. These models

have not sufficiently analyzed variables related to employer demand (and the interaction of employer demand/supply and the environment) as predictors of employment outcomes for people with disabilities. Thus,

there is a need to systematically understand demand characteristics for qualified workers with disabilities,

particularly as work requirements change over time. This project sets out scientifically rigorous and evidence-based methods to develop, identify, and evaluate employment demand-side models. It translates the

findings into valid and practical tools for large and small businesses in different market sectors to improve

employment outcomes. It evaluates the relative efficacy of these tools alongside supply side research

outcomes. The project is a nationwide collaboration of economists, statisticians, and leading experts in law,

public and disability policy, corporate culture, applied life studies, technology, and education, as applied to

disability employment policy and law. Project leadership includes disability scholars from universities around

the country, with combined decades of research, training, and knowledge dissemination experience. The

project builds fresh partnerships among disability policy and law experts, the business community, researchers, and national disability organizations such as the National Organization on Disability and the National

Council on Independent Living. The project generates new knowledge to better understand market-driven

workforce trends in large and small firms and different market sectors, and to inform employment practices

to prepare individuals with disabilities for the present and future workforce. The project has a systematic

plan and logic model for knowledge translation and dissemination aimed at providing employers best

practice and practical tools to improve employment outcomes of people with disabilities.
1-12 NIDRR Program Directory FY 2006 - Employment Outcomes

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

LET’S ROLL: Understanding and Responding to the Needs of People

with Disabilities and the Ticket-To-Work Program

DePaul University

College of Liberal Arts and Sciences

Psychology Department

2219 North Kenmore Avenue, Suite 420

Chicago, IL 60614

bhernan4@depaul.edu

Principal Investigator: Brigida Hernandez, PhD

Public Contact: 773/325-4840; Fax: 773/325-7888

Project Number: H133G030165

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06 $0 (No-cost extension

through 9/30/2007)

Abstract: The mission of the project is threefold. First, the project builds scientific knowledge regarding the

needs of people with disabilities as they pertain to the Ticket-to-Work program and, more generally, vocational rehabilitation services. Second, there is a concentrated emphasis on examining the diversity of needs

based on racial/ethnic background and type of disability. Lastly, the project aims to understand and address

the capacity of employment networks and offices of rehabilitation services in terms of their outreach and

delivery of services.
NIDRR Program Directory FY 2006 - Employment Outcomes 1-13

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Exploratory Study of the Relationship Between Stigma at the Workplace

and the Vocational Recovery of People with Psychiatric Disabilities

Boston University

Center for Psychiatric Rehabilitation

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue

Boston, MA 02215

zlatka@bu.edu

www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133G030190

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $149,985; FY 04 $149,938; FY 05 $149,971; FY 06 $0 (No-cost extension

through 9/30/2007).

Abstract: The purpose of this project is to study the relationship between stigma of mental illness at the

workplace and the vocational recovery of persons with psychiatric disabilities. More specifically, the project

focuses, on one hand, on operationalizing the traumatic negative impact of stigma on mental health consumers’ capacity to obtain and sustain competitive employment, and, on the other hand, on the objective and

subjective factors (i.e., supportive work environment, effective coping strategies, etc.) that minimize the

interference of stigma with the vocational recovery of persons with psychiatric disabilities. In addition, the

study explores the pivotal role of disclosure at the workplace in understanding the complex, multi-faceted

relationship between stigma and the vocational recovery among persons with serious mental illness whose

disability is often invisible.
1-14 NIDRR Program Directory FY 2006 - Employment Outcomes

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Development of Materials and Methods Needed to Deliver a Proven Job

Retention Vocational Rehabilitation Intervention

Boston University

School of Medicine

715 Albany Street, Room A203

Boston, MA 02118

sallaire@bu.edu

Principal Investigator: Saralynn J. Allaire, ScD

Public Contact: 617/638-5180; Fax: 617/638-5239

Project Number: H133G040216

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 04 $136,876; FY 05 $111,005; FY 06 $149,148

Abstract: The purpose of the project is to maximize the full inclusion of persons with chronic diseases at

risk for work disability into employment and economic self- sufficiency. The project uses the knowledge and

understanding obtained from a recently completed research study showing that a job retention vocational

rehabilitation (VR) intervention developed for the study reduced job loss in a sample of employed persons

with serious rheumatic diseases. The approach to VR for the target population was innovative in that its goal

was to prevent work disability rather than try to correct it. The specific intervention was innovative in that it

incorporated strategies derived from both research and rehabilitation counseling expertise. The goal of the

project is to develop the methods and materials needed by organizations providing VR services to carry out

the intervention tested in the recently completed research study. Its short-term outcomes are increased

ability of counselors to effectively deliver job retention VR intervention to employed persons with chronic

diseases, improved knowledge of how to inform persons with chronic diseases of the availability of VR

services, and increased awareness of the intervention and the requirements for delivering it. The objectives

of the project are as follows: (1) to produce a Training Manual that contains information and materials

needed to train counselors to carry out the intervention; (2) to produce a User’s Manual that contains the

materials needed by counselors to carry out the intervention; (3) to assess the satisfaction of recipients with

the intervention, including its content; (4) to produce a Recruitment Manual that contains strategy information and materials needed for reaching the target population; (5) to calculate intervention costs; and (6) to

conduct dissemination activities to increase awareness of the value of the intervention and requirements for

implementing it.
NIDRR Program Directory FY 2006 - Employment Outcomes 1-15

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Hampshire

Cognitive Training and Supported Employment in Severe Mental Illness

Dartmouth College

PRC, 105 Pleasant Street

Concord, NH 03301-3852

Susan.R.McGurk@Dartmouth.edu

Principal Investigator: Susan McGurk, PhD

Public Contact: 603/271-5747; Fax: 603/271-5265

Project Number: H133G050230

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 05 $149,736; FY 06 $149,749

Abstract: Impaired cognitive functioning is an important predictor of employment outcomes in persons with

severe mental illness (SMI), and a common complaint in consumers participating in vocational rehabilitation,

including those in supported employment. This project evaluates a new, pilot tested and standardized

intervention, the “Thinking Skills for Work” program is designed to help people with SMI succeed in

supported employment programs, including both getting and keeping jobs. The Thinking Skills for Work

program is aimed at improving the cognitive functioning of persons with SMI involved in supported employment, and is based on a heuristic model of the interactions between cognition, symptoms, work performance, and vocational services. According to the model, enhanced cognitive functions improve both work

outcomes and the efficiency of vocational services (i.e., fewer support services needed per hour of consumer work). The Thinking Skills for Work program is delivered by a specialist who educates consumers

about cognitive functioning and work, involves them in a three-month program of computerized cognitive

skills training, and works in collaboration with the consumer and supported employment specialist to identify

appropriate jobs, practice newly acquired cognitive skills in work-related settings, and develop compensatory strategies for managing persistent cognitive impairments.
1-16 NIDRR Program Directory FY 2006 - Employment Outcomes

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Hampshire

15-year Course of Competitive Employment for People with Severe

Mental Illness

Dartmouth Medical School

Department of Psychiatry

2 Whipple Place, Suite 202

Lebanon, NH 03766

Principal Investigator: Robert E. Drake MD, PhD

Public Contact: 603/448-0263; Fax: 603/448-3976

Project Number: H133G050181

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 05 $149,796; FY 06 $149,832

Abstract: Little is known about long-term employment among people with severe and persistent psychiatric

illnesses, such as schizophrenia or bipolar disorder, and vocational disabilities. Two small pilot studies

suggest that a large proportion of these individuals, when exposed to effective vocational rehabilitation (VR)

and supported employment services, do attain long-term jobs that are associated with greater independence, economic self-sufficiency, and recovery, but a prospective, longitudinal study is critically needed to

confirm and amplify these findings. To address this issue, this study: (1) examines the longitudinal course of

competitive employment (any competitive job) and long-term jobs (competitive employment lasting greater

than one year) among people with severe mental illnesses; (2) details the impact of VR services, supported

employment, and other services on long-term employment; and (3) examines the correlates of long-term

employment, including independence, economic self-sufficiency, quality of life, and other aspects of recovery. The key objectives are to build a timeline of work, earned and other income, benefits, independent

living, social functioning, symptom control, and quality of life over 15 years for each individual on the basis

of multiple data sources; to link VR and other service records with employment outcomes by statistical

means and by self-report; and to link employment outcomes with other manifestations of recovery, again by

statistical means and by self-report. The project uses timeline methods, longitudinal data methods, and

narrative self-reports to conduct these analyses. The outcomes of the study are to show that individuals with

the most severe psychiatric disabilities are able to attain high rates of competitive employment and long-term

employment, that VR and other services are critical to successful long-term employment, and that long-term

employment is associated with independence, economic improvements, quality of life, and recovery.
NIDRR Program Directory FY 2006 - Employment Outcomes 1-17

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

VRA-NET: Developing a Network of Trained Paraprofessionals to

Address Personnel Shortages in Vision Rehabilitation

Lighthouse International

111 East 59th Street

New York, NY 10022-1202

kseidman@lighthouse.org

Principal Investigator: Karen R. Seidman, MPA

Public Contact: 212/821-9465; Fax: 212/821-9705

Project Number: H133G050058

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $149,990; FY 06 $149,252

Abstract: This project pilot tests a state-of-the art, accessible, online, and mentored training program with

students and mentors in state and private agencies for the blind and those with visual impairments around the

nation. Lighthouse International’s VRA-Net development initiative is based on the successes of previous

projects involving the development of both comprehensive curricula and an accessible online training program for Vision Rehabilitation Assistants. The overall goal is to address a severe shortage of trained vision

rehabilitation personnel, while increasing the availability of specialized vision rehabilitation services to meet

the burgeoning population of adults with visual impairment in the US. The objectives of the project are to

demonstrate the effectiveness of an accessible, online, mentored, and competency-based paraprofessional

training program; promote the employment of persons with visual impairments, other conditions, and from

disadvantaged backgrounds by providing a career path for these paraprofessionals in the field of vision

rehabilitation; and evaluate and compare the implementation of onsite and remote mentors during the online

and mentored training process.
1-18 NIDRR Program Directory FY 2006 - Employment Outcomes

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oklahoma

Development and Distribution of an Accessible E-Learning Authoring

System Software and Model Course for Vocational Rehabilitation

Services Personnel

University of Oklahoma

National Center for Disability Education and Training

106 Constitution, Building 158

Norman, OK 73072

rfcook@ou.edu

vdudgeon@ou.edu

Principal Investigator: Rebecca Cook

Public Contact: 405/325-0158; Fax: 405/325-1632

Project Number: H133G030063

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 03 $149,991; FY 04 $149,964; FY 05 $149,938; FY 06 $0 (No-cost extension

through 3/31/2007)

Abstract: This project develops and distributes two products that improve e- learning accessibility options

and increase employment opportunities for people with disabilities. These products directly benefit two

groups: (1) Instructional designers for web based courses, trainers in government and industry, and educators with access to a website link providing Flash components to be used in the development of accessible

courseware for online learning. An online tutorial for the components will be developed and available with

the Flash components. A Section 508 compliance and accessibility course is also in development. This

course discusses the accessibility standards and what it means to develop web-based courses that are

compliant and accessible. User- friendly, reusable templates are provided, thus enabling programmers to

develop accessible courseware with less time and expense. (2) Vocational rehabilitation services and

supported employment personnel receive a “face to face” web-based course. This course is an accessible

model course available on a public website that teaches basic strategies of marketing and job development

for people with disabilities.
Health and Function

Maximizing health and function among people with disabilities is critical to the

achievement of NIDRR’s mission and the associated higher-order goals of

employment and community participation. Functional ability reflects the complex

interaction between individuals and the environments in which they live. Accordingly,

NIDRR conceptualizes and examines issues of health and function at the individual and

systems levels. Individual level research focuses on the development and testing of

new interventions that improve functional and health outcomes for individuals. At the

systems level, NIDRR-supported research focuses on the organization, and delivery of

health care and medical rehabilitation services.

Contents

Rehabilitation Research and Training Centers (RRTCs) ............................................................................ 3

Disability and Rehabilitation Research Projects ...................................................................................... 12

Model Traumatic Brain Injury Systems .................................................................................................. 21

Model Burn Injury Systems................................................................................................................... 37

Model Spinal Cord Injury Systems........................................................................................................ 42

Field Initiated Projects (FIPs) ............................................................................................................... 60

Small Business Innovative Research (SBIR), Phase II ............................................................................ 90

NIDRR Program Directory FY 2006 - Health and Function 2-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center in Neuromuscular Diseases

(RRTC/NMD)

University of California, Davis

Department of Physical Medicine and Rehabilitation (TB191)

School of Medicine

Shields Avenue

Davis, CA 95616

nmdinfo@ucdavis.edu

www.nmdinfo.net

Principal Investigator: Craig McDonald, MD

Public Contact: Sandy Walsh, Coordinator of Information Services 530/752-3447; Fax: 530/752-3468

Project Number: H133B031118

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000; FY 06 $800,000

Abstract: The purpose of the Rehabilitation Research and Training Center in Neuromuscular Diseases

(RRTC/NMD) is to enhance the health, function, and quality of lives of persons with neuromuscular diseases

(NMD). The goals of this project are to: (1) develop a program for multicenter rehabilitation research in

NMD through the Cooperative International Neuromuscular Research Group (CINRG); (2) conduct

research that continues to address rehabilitation needs, particularly related to exercise, nutrition, pain,

secondary conditions, and the quality of life of individuals with neuromuscular diseases; (3) develop and

evaluate new or emerging technologies and interventions that provide the information needed to improve

employment, community integration, and quality of life outcomes for this population of individuals with

disabilities; (4) develop and evaluate appropriate health promotion and wellness programs that enhance the

ability of individuals with neuromuscular disease to be physically active and participate in recreational

activities; and (5) conduct a comprehensive program of training, dissemination, utilization, and technical

assistance activities that are well-anchored in the research program and address the needs of stakeholders.
2-4 NIDRR Program Directory FY 2006 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Aging-Related Changes in Impairment for Persons Living with Physical

Disabilities

Los Amigos Research & Education Institute, Inc.

7601 East Imperial Highway

800 West Annex

Downey, CA 90242

lcarrothers@agingwithdisability.org

www.agingwithdisability.org

Principal Investigator: Bryan J. Kemp, PhD

Public Contact: LeeAnn Carrothers, PT, PhD, Training Director 562/401-7402; Fax: 562/401-7011

Project Number: H133B031002

Start Date: August 01, 2003

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $700,000; FY 04 $700,000; FY 05 $700,000; FY 06 $700,000

Abstract: This project is a combined effort of Rancho Los Amigos National Rehabilitation Center and the

University of California at Irvine, with other collaborators including the Center for Disability in the Health

Professions at Western University and two Rehabilitation Engineering Research Centers. This project

evolves from the fact that persons who have a disability are now living into middle age and late life in everincreasing numbers. However, many of these people appear to be experiencing premature age-related

changes in health and functioning. The project tests a model for improved understanding of these problems

and interventions to help alleviate them. Persons who are experiencing these kinds of problems and their

families are included in all center projects. The training, dissemination, and technical assistance activities

include clinical training of current and future health providers, current and future researchers, persons with

disabilities, their families, and policy makers. Both traditional methods of one-on-one and group training as

well as technology-based distance training techniques are used to reach national audiences and underserved populations.
NIDRR Program Directory FY 2006 - Health and Function 2-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Access to Rehabilitation and Empowerment Opportunities for Minority

Persons with Disabilities

Howard University

1840 7th Street, NW, 2nd floor

Washington, DC 20001

mross@howard.edu

www.law.howard.edu/HURTC/HURTC.html

Principal Investigator: Dr. M. Gerlene Ross

Public Contact: 202/865-8140; Fax: 202/806-8148

Project Number: H133B000903

Start Date: October 01, 2000

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $600,000; FY 01 $600,000; FY 02 $600,000; FY 03 $600,000; FY 04

$600,000; FY 05 $0 (No-cost extension through 9/30/2006); FY 06 $0 (No-cost extension through 12/

31/2006)

Other Funding: FY 01 $39,375 (NIDRR)

Abstract: The Howard University Research and Training Center for Access to Rehabilitation and Empowerment Opportunity (HURTC) is implementing a RRTC on Access to Rehabilitation and Empowerment

Opportunities for Minority Persons with Disabilities to help them achieve self-determination, economic

independence, and full participation in American life. The program of the Center is designed to attain the

following objectives: identify methodological problems determining the rehabilitation needs of persons with

disabilities from minority backgrounds (including sub-populations within these groups) and propose strategies to address these methodological problems; based on research findings, identify implications for rehabilitation research, training, policy development, and services; assess the outcomes of rehabilitation for persons

with disabilities from minority backgrounds as measured by two or more variables (such as functional

abilities, wellness, employment, health/wellness, and psychosocial status); analyze the affects of minority

status on rehabilitation outcomes; and identify, develop, and evaluate rehabilitation methodologies, models,

and interventions for specific minority groups. The HURTC collaborates with the Center for Disease Control, the Center for Minority Health, and a variety of stakeholders including consumers with disabilities, state

agencies, continuing education programs, and community-based organizations.
2-6 NIDRR Program Directory FY 2006 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Rehabilitation Research and Training Center on Spinal Cord Injury:

Promoting Health and Preventing Complications through Exercise

National Rehabilitation Hospital/MedStar Research Institute

102 Irving Street, NW

Washington, DC 20010

melinda.t.neri@medstar.net

www.sci-health.org

Principal Investigator: Suzanne L. Groah, MD 202/877-1196

Public Contact: Mel Neri, Project Coordinator, National Rehabilitation Hospital Center for Health and

Disability Research, 102 Irving Street, NW, Washington, DC 20010-2949 202/877-1038; Fax:

202/726-7521

Project Number: H133B031114

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000; FY 06 $800,000

Abstract: This project systematically and comprehensively addresses the role and impact of physical

activity in the prevention of secondary conditions in people with spinal cord injury (SCI). Initially, the project

establishes critical, yet-undefined physiological responses to exercise in SCI and comprehensively examines

cardiovascular disease risk in individuals with SCI applying accepted guidelines used in the able-bodied

population. The project develops exercise formats specifically designed according to severity of SCI and

chronicity of SCI to address the prevention of and knowledge regarding osteoporosis and other secondary

conditions. In addition, the project determines whether regular exercise is related to fewer secondary

conditions. These research findings feed into four training activities that include a peer mentoring program for

newly injured people with SCI, a consumer-driven education curriculum for physical therapy and medical

students, a state-of-science and training conference, and the development of a virtual resource network on

exercise and prevention. The RRTC is a collaborative effort of clinical and disability researchers, SCI

consumer organizations, and independent living advocates. The RRTC maintains a Live Journal site at rrtcsci.livejournal.com/ and a webcast on Exercise and Physical Activity for Persons with SCI at

nrhfoundry.medstar.net/mediasite/viewer/?cid=d8381286-2ad2-4fed-922c-31464b0cc049
NIDRR Program Directory FY 2006 - Health and Function 2-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

RRTC on Technology Promoting Integration for Stroke Survivors:

Overcoming Social Barriers

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611

ejr@northwestern.edu

www.rrtc-stroke.org/

Principal Investigator: Elliot J. Roth, MD 312/238-4637

Public Contact: Linda Lovell, Project Coordinator 312/238-6197; Fax: 312/238-6998

Project Number: H133B031127

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000; FY 06 $800,000

Abstract: This project develops and evaluates a sequence of robotic training and assistive devices that are

designed with the idea of promoting efficient function in the workplace or at home, and with the further intent

that they form a basis for the development of appropriate technologies to allow people with disabilities

ready access to existing facilities in the community. At each stage the project engages engineering students as

a means to provide intensive effort for development of novel designs, but also to provide valuable opportunities for training students in the themes related to recovery of function and community integration of people

with disabilities. Other projects at this center include: the use of emotionally expressive and narrative writing

to facilitate coping and adaptation after stroke; computerized training for conversational scripts that facilitate

access to the community and work force; and a consumer-directed, dynamic assessment methodology for

evaluating community living and work participation environments and technologies for use by people who

have had a stroke. In addition to these projects, the RRTC develops and evaluates a comprehensive plan

for training directed to stroke survivors and their families, students, researchers, clinicians, and service

providers. These approaches are implemented through a variety of mechanisms, including continuing education courses, web-based presentations, and intensive training in our research facilities.
2-8 NIDRR Program Directory FY 2006 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Missouri

Missouri Arthritis Rehabilitation Research and Training Center

(MARRTC)

University of Missouri

Physical Medicine and Rehabilitation

One Hospital Drive, DC330.00

Columbia, MO 65212

holtmeyerk@health.missouri.edu

www.marrtc.org

Principal Investigator: Jerry C. Parker, PhD

Public Contact: Kim Holtmeyer 573/884-1499; Fax: 573/884-3020

Project Number: H133B031120

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000; FY 06 $800,000

Abstract: The purpose of the Missouri Arthritis Rehabilitation Research and Training Center (MARRTC) is

to provide leadership at the national level in support of three key objectives: to reduce pain and disability, to

improve physical fitness and quality of life, and to promote independent living and community integration for

persons with arthritis of all ages in the United States. State-of-the-science rehabilitation research addresses

the needs of persons with arthritis in the following areas: (1) home and community-based self-management

programs, (2) benefits of exercise and physical fitness, and (3) technologies available to the broad populations of persons with arthritis in the environments where they live, learn, work, and play. The MARRTC

conducts training and capacity-building programs for critical stakeholders within the arthritis disability arena,

including consumers, family members, service providers, and policy makers. Additionally, the MARRTC

provides technical assistance for persons with arthritis and other stakeholders in order to promote utilization

of arthritis-related, disability research. The MARRTC also provides widespread dissemination of informational materials to persons with disabilities, their representatives, service providers, and other target audiences (e.g., editors and reporters).
NIDRR Program Directory FY 2006 - Health and Function 2-9

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Traumatic Brain Injury

Interventions

Mount Sinai School of Medicine

Research and Training Center

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

www.tbicentral.org

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372 (V); 212/241-8978 (TTY); Fax: 212/348-5901

Project Number: H133B040033

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 04 $700,000; FY 05 $700,000; FY 06 $700,000

Abstract: The research program includes two randomized clinical trials (RCTs) and two projects supportive of better everyday interventions and better research: Research Study 1 (R1) is an RCT of a treatment

for depression: cognitive behavioral therapy, adapted to address the unique cognitive and behavioral challenges of people with TBI that often pose barriers to treating depression, a major factor in reducing postTBI quality of life, is compared to supportive therapy. In R2, a second RCT, a standard day treatment

program is compared to a similar program (Executive Plus), augmented with modules to improve executive

functioning and attention training. R3, Support for Evidence-Based Practice, evaluates all published research

on post-TBI interventions and assessment of outcomes; it serves as a national resource for disseminating the

results. It also implements three participatory action research-based analyses of high priority areas, including

meta-analyses if appropriate. In addressing improved outcome measurement, R4 focuses on the PART

instrument, a measure of participation currently being tested within eight TBI Model Systems. R4 focuses on

creating a subjective approach to serve as a complement to the PART’s current focus on objective assessment. A major focus of the RRTC is placed on capacity building of clinical and research professionals to

address the need for better day-to-day interventions in the lives of people with TBI. Often their medical

needs are misread, their brain injury goes unidentified, and they find services and accommodations inappropriate. Capacity building focuses on students early in their educational career - to help shape career choice

and points of view; graduate and post-graduate students; and practicing “gate keepers” in the community,

primarily psychologists and physicians.
2-10 NIDRR Program Directory FY 2006 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center on Health and Wellness in

Long Term Disability

Oregon Health and Science University

Oregon Institute on Disability and Development

Child Development and Rehabilitation Center

707 Southwest Gaines; P.O. Box 574

Portland, OR 97207-0574

rrtc@ohsu.edu

www.healthwellness.org

Principal Investigator: Gloria Krahn, PhD, MPH 503/494-8364

Public Contact: Susan Wingenfeld 503/494-3533; Fax: 503/494-6868

Project Number: H133B040034

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 04 $700,000; FY 05 $700,000; FY 06 $700,000

Abstract: The vision of the RRTC is to contribute to the reduction of health disparities for person with

disabilities through an integrated program of research, training, technical assistance, and dissemination. The

Center has three inter-related strands of work to address its three intended outcomes/goals: (1) identify

strategies to overcome barriers that impede access to routine healthcare for individuals with disabilities; (2)

identify interventions in areas such as exercise, nutrition, pain management, or complementary and alternative therapies that promote health and wellness and minimize the occurrence of secondary conditions for

persons with disabilities; and (3) develop improved status measurement tool(s) to assess health and wellbeing of individuals with disabilities regardless of functional ability. In order to achieve these outcomes, the

RRTC conducts a coordinated program of research and training activities using a logic model framework.

RRTC projects summarize and validate existing research findings on barriers to health care access as well as

rigorously test and compare new strategies to overcoming identified barriers. The RRTC also examines and

evaluates the practices of exemplary generic and specialized health promotion programs for people with

disabilities in order to create an evidence-based set of evaluation and planning criteria. In addition, the

RRTC organizes and uses panels to assess current health status measurement tools and develops or refines

measures to more accurately reflect the health and well-being of people living with disabilities. Throughout

these activities the RRTC disseminates informational materials and provide technical assistance to individuals

with disabilities, their representatives, providers, and other interested parties.
NIDRR Program Directory FY 2006 - Health and Function 2-11

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Washington

Multiple Sclerosis Rehabilitation Research and Training Center

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98185

msrrtc@u.washington.edu

www.msrrtc.washington.edu

Principal Investigator: George H. Kraft, MD 206/543-7272

Public Contact: 888/634-6778; 206/221-5302; Fax: 206/685-3244

Project Number: H133B031129

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000; FY 06 $800,000

Abstract: This center conducts rehabilitation research that: (1) develops new interventions and practices in

the areas of disease suppression, strength enhancement, preserving employment, depression management,

and pain control; (2) collects data from an extensive survey and explores complex interactions among

multiple variables, models factors that predict differing levels of participation by people with multiple sclerosis (MS), and proposes points of intervention that modify changes in function; and (3) facilitates enhanced

participation through training, technical assistance, and dissemination through professional meetings, publications, and a State-of-the-Science conference. In addition, a web-based knowledgebase provides technical

assistance to individuals with MS and healthcare providers with respect to caregiver issues, financial and

insurance planning, self-sufficiency and coping, and assistive technology.
2-12 NIDRR Program Directory FY 2006 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

Collaborative Spinal Cord Injury Model Systems Centers Program:

Improving Spinal Cord Injury Rehabilitation Outcomes

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

charrison-felix@craighospital.org

www.craighospital.org

Principal Investigator: Gale G. Whiteneck, PhD 303/789-8204

Public Contact: Cynthia Harrison-Felix, PhD 303/789-8565; Fax: 303/789-8441

Project Number: H133A060103

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 06 $2,200,000

Abstract: Inpatient rehabilitation for spinal cord injury (SCI), like all of rehabilitation, has been studied

largely as an undifferentiated black box. Research has examined the whole “rehabilitation package” but has

not addressed which specific therapy interventions, medical procedures, patient education, counseling, or

activities are effective when offered in various combinations or sequences, for specific types of patients and

impairments. To address this limitation, this project uses Clinical Practice Improvement (CPI) research

methodology to isolate specific components of rehabilitation interventions, and to determine how, and to

what degree, each component is associated with outcomes. Specific aims are to: (1) identify individual

patient characteristics, including demographic data, severity of spinal cord injury, and severity of illness

(complications and comorbidities), that explain significant variation in the outcomes of acute rehabilitation for

SCI; (2) identify specific medical/nursing procedures and therapy interventions, or combinations of procedures and interventions that are associated with better outcomes, controlling for patient characteristics; and

(3) determine whether specific impairment-by-treatment interactions are associated with better outcomes.

This project is a collaborative research partnership with five other prominent SCI rehabilitation facilities:

Rehabilitation Institute of Chicago, Shepherd Center, Mt. Sinai Medical Center, National Rehabilitation

Hospital, and Carolinas Rehabilitation. Also collaborating is the Institute for Clinical Outcomes Research at

International Severity Information Systems in Salt Lake City, Utah, which has extensive experience applying

CPI methodology, and MobileDataForce in Boise, Idaho, with expertise in handheld data capture technology.
NIDRR Program Directory FY 2006 - Health and Function 2-13

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

The National Data and Statistical Center for the Traumatic Brain Injury

Model Systems

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

charrison-felix@craighospital.org

www.craighospital.org

Principal Investigator: Cynthia Harrison-Felix, PhD

Public Contact: 303/789-8565; Fax: 303/789-8441

Project Number: H133A060038

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 06 $625,000

Abstract: By implementing a comprehensive and innovative program of new data management technologies

and operating procedures that emulate the best practices of clinical research organizations and data coordinating centers, the National Data and Statistical Center (NDSC) increases the rigor and efficiency of

scientific efforts to longitudinally assess the experience of individuals with traumatic brain injury (TBI) and

advances TBI rehabilitation. The TBIMS database and the NDSC introduce the following innovations: a

state-of-the-art web-based data management system; a computer-assisted interview system; a Standard

Operating Procedures Manual; training through quarterly web-based conferences, as well as more frequent

in-person conferences; comprehensive Data Collector certification; annual data monitoring visits to each

center; analysis of ethnic/racial bias in participant recruitment and retention and collaboration with the

NIDRR-funded Center for Capacity Building on Minorities with Disabilities Research; providing more

comprehensive methodological as well as statistical consultation; continuation of the TBIMS survival study;

a system for following participants from defunded centers; and the use of common procedures, technologies, and training among all Model System Data Centers.
2-14 NIDRR Program Directory FY 2006 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Health Services Research DRRP on Medical Rehabilitation

Northwestern University

Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611-2654

a-heinemann@northwestern.edu

www.ric.org/research/outcomes/drrp.php

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-2383

Project Number: H133A030807

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 03 $300,000; FY 04 $300,000; FY 05 $300,000; FY 06 $300,000

Abstract: This research addresses the need to improve the delivery of health services to persons with

disabilities by (1) evaluating the impact of Medicare’s inpatient rehabilitation facilities’ (IRF) prospective

payment system (PPS) on access to rehabilitation services in terms of settings, services, and length of stay;

and (2) identifying the impact of comorbidities on how patients are classified and reimbursed under the new

IRF PPS. Medicare’s new PPS for IRF may limit effective access to care because facilities will take fewer

risks with patients deemed to be “high cost outliners,” hire more “therapy extenders” rather than licensed

professionals, and discharge patients at a higher rate to nursing facilities rather than to community settings.

The four specific aims of the research are to: (1) examine changes in the organization of medical rehabilitation services in response to prospective payment; (2) examine changes in patient access to medical rehabilitation settings and services resulting from organizational responses to the change in reimbursement; (3)

examine the impact of PPS-related changes in service delivery on patient outcomes; and (4) identify the

impact of comorbidities on classification and reimbursement in medical rehabilitation PPS.
NIDRR Program Directory FY 2006 - Health and Function 2-15

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Reducing Obesity and Obesity-Related Secondary Conditions in

Adolescents with Disabilities

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Suite 712

Chicago, IL 60608-6904

jrimmer@uic.edu

www.rectech.org

Principal Investigator: James H. Rimmer, PhD

Public Contact: 312/413-9651; Fax: 312/355-4058

Project Number: H133A060066

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 06 $250,000

Abstract: This project examines the antecedents and consequences of obesity using the ICF framework

that addresses both person and environment contextual factors that relate to obesity in adolescents with

disabilities; evaluates the validity and utility of an alternative approach for establishing more accurate cutoff

points for overweight and obesity in adolescents with disabilities; develops a pilot intervention using an

innovative personalized exercise and nutrition program (PEP-for-Youth) for managing obesity among youth

with physical and developmental disabilities; and develops mutually beneficial working partnerships with

community-based organizations to promote reduction of obesity in youth with disabilities. The research

projects operate in partnership with Shriners Hospitals for Children and six national disability organizations

(Easter Seals, United Cerebral Palsy, Spina Bifida Association, The Arc, Partners for Youth with Disabilities,

and Blaze Sports America).
2-16 NIDRR Program Directory FY 2006 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Jersey

A Multicenter Prospective Randomized Controlled Trial of the

Effectiveness of Amantadine Hydrochloride in Promoting Recovery of

Function Following Severe Traumatic Brain Injury

JFK Johnson Rehabilitation Institute

Center for Head Injuries

2048 Oak Tree Road

Edison, NJ 08820

jgiacino@solarishs.org

www.njrehab.org/tbims/index.asp

Principal Investigator: Joseph T. Giacino, PhD

Public Contact: 732/205-1461; Fax: 732/632-1584

Project Number: H133A031713

Start Date: January 01, 2004

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 03 $599,862; FY 04 $599,994; FY 05 $599,994; FY 06 $599,994

Abstract: In this study, eight facilities (three of which are also Traumatic Brain Injury (TBI) Model Systems), join with a Data Coordinating Center at Columbia University, to conduct a prospective double blind

randomized controlled trial of amantadine. More than 180 patients who remain in vegetative state (VS) or

minimally conscious state (MCS) 4-16 weeks post-TBI are randomized in a stratified fashion to 4 weeks of

amantadine (200-400 mg/day) vs. placebo, followed by a 2-week washout period. The Disability Rating

Scale is the primary dependent variable with the Coma Recovery Scale-Revised serving as a supplementary

measure. The project also explores whether treatment response differs by time post-injury and by diagnosis

(i.e., VS or MCS) at treatment onset, and whether specific outcomes of importance to caregivers are

achieved more often in the amantadine group.
NIDRR Program Directory FY 2006 - Health and Function 2-17

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Pennsylvania

Collaboration of Upper Limb Pain in Spinal Cord Injury

University of Pittsburgh

7180 Highland Drive

Pittsburgh, PA 15206

boninger@pitt.edu

www.herlpitt.org

Principal Investigator: Michael L. Boninger, MD

Public Contact: Peter Hunt 412/365-4850; Fax: 412/365-4858

Project Number: H133A011107

Start Date: December 01, 2001

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $349,998; FY 02 $349,950; FY 03 $349,954; FY 04 $349,936; FY 05

$349,947; FY 06 $0 (No-cost extension through 11/30/2007)

Abstract: This collaborative studies project provides an opportunity to gain further insight into the cause

and prevention of upper limb repetitive strain injuries in SCI. For the approximately 200,000 individuals

with SCI, upper limb pain and injury is very common; some studies find prevalence rates above 70 percent.

Prolonged wheelchair use and transfers have long been thought to cause these repetitive strain injuries. The

consequences of upper limb pain are so significant that some researchers have suggested that damage to the

upper arm may be functionally and economically equivalent to a spinal cord injury of higher neurological

level. This collaboration includes the University of Pittsburgh Medical Center Spinal Cord Injury project, the

Northern New Jersey Spinal Cord Injury System (NNJSCIS), and the Northwest Regional Spinal Cord

Injury System (NWRSCIS).
2-18 NIDRR Program Directory FY 2006 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Virginia

Medicaid Quality Indicators for Individuals with Disabilities

George Mason University

College of Nursing and Health Science

B424 Robinson Hall

4400 University Drive

Fairfax, VA 22030

spalsbo@gmu.edu

www.gmu.edu/departments/chpre/healthpolicy/researchprojects.html

Principal Investigator: Susan E. Palsbo, PhD

Public Contact: 703/993-2173; Fax: 703/993-1953

Project Number: H133A040016

Start Date: July 01, 2004

Length: 48 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 04 $299,999; FY 05 $299,999; FY 06 $299,999

Abstract: This project develops and validates health service quality indicators for people with disabilities.

The target population to be served is people with disabilities enrolled in managed Medicaid programs. The

goal is to develop and field test quality measures for people with disabilities in managed care organizations.

The specific aims are: (1) Case Identification: Improve the computer algorithm for Medicaid plans to identify

beneficiaries who have disabilities. (2) Plan-reported indicators: Select a subset of existing HEDIS Medicaid

measures that are appropriate and statistically meaningful for indicating the quality of care for the people

identified in Aim#1. (3) Consumer-reported indicators: Assess the content validity of the Axis-CAHPS

survey. (4) Develop comparative reporting tools of the quality of care between and within health plans. This

is a combined qualitative and quantitative study with three interrelated segments. (1) Extend previous

research on using routine health claims data to identify beneficiaries who are at risk of needing modified help

to access their Medicaid benefits and services. (2) Review and refine the two most widely used Medicaid

quality indicator tools, CAHPS and HEDIS; and extend work on refining the CAHPS instrument for people

with physical disabilities. (3) Explore how people with disabilities, payers, and providers can use the indicators to improve practice and report outcomes using comparative reporting tools.
NIDRR Program Directory FY 2006 - Health and Function 2-19

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

The Effect of Scheduled Telephone Intervention on Outcomes After

Traumatic Brain Injury (TBI)

University of Washington

Department of Rehabilitation Medicine

Box 356490, BB-953 Health Sciences

Seattle, WA 98195

krbell@u.washington.edu

depts.washington.edu/rehab/tbi

Principal Investigator: Kathleen R. Bell, PhD

Public Contact: 206/685-0935; Fax: 206/685-3244

Project Number: H133A040004

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $600,000; FY 05 $600,000; FY 06 $600,000

Abstract: This project evaluates the effect of scheduled telephone intervention (STI), a low-cost, easily

implemented intervention in three states on functional and health outcomes, at weeks 1-2, 4, 8, and 12, and

months 5, 7, and 9 on functional level, health and emotional status, community integration, and perceived

quality of well-being over one year after TBI. Timely intervention to identify problems after TBI, to teach

patients and their families coping techniques within their own communities and support their independent

decision-making may effectively decrease the need for expensive and often inaccessible services and may

improve the quality of life for survivors of TBI. Researchers are evaluating the effect of additional STI at

months 15, 18, and 21 on the same variables and employment at two years after TBI. Research examines

whether the effects of such intervention are similar in multiple sites over a wide geographic area. It also

examines the differential impact of the intervention in demographic subgroups, with particular attention to

minority versus non-minority racial and ethnic populations.
2-20 NIDRR Program Directory FY 2006 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

Controlled Trial of Venlafaxine XR for Depression After SCI: A Multisite

Study

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98195-6490

scirehab@u.washington.edu

depts.washington.edu/rehab/sci

Principal Investigator: Charles H. Bombardier, PhD 206/731-3665

Public Contact: Cynthia Salzman, MHA 206/685-3999; Fax: 206/685-3244

Project Number: H133A060107

Start Date: January 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $2,198,213

Abstract: This project is a multisite, randomized, double-blind, placebo controlled trial of venlafaxine XR

(Effexor XR) in 168 adults with spinal cord injury (SCI) and major depressive disorder (MDD) who are

one or more years post injury. The purpose of the study is to examine the efficacy and tolerability of

venlafaxine XR as a treatment for MDD. The primary outcome is the percent of responders (those who

report at least a 50% reduction in depression severity from baseline to the end of treatment) in the

venlafaxine XR versus placebo control group using intent-to-treat analysis. Secondary outcomes include

changes in pain, health related quality of life, and participation. A successful clinical trial could lead to more

aggressive identification and treatment of MDD as well as improved health and quality of life in this important population.
NIDRR Program Directory FY 2006 - Health and Function 2-21

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Alabama

UAB TBI Model System

University of Alabama/Birmingham

Spain Rehabilitation Center

Physical Medicine and Rehabilitation

619 - 19th Street South, SRC529

Birmingham, AL 35249-7330

novack@uab.edu

www.uab.edu/tbi

Principal Investigator: Thomas A. Novack, PhD

Public Contact: Pamela K. Mott 205/934-3283

Project Number: H133A020509

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000; FY 06

$365,000

Abstract: The University of Alabama at Birmingham (UAB) is maintaining and further developing a Traumatic Brain Injury Model System (TBIMS) that improves rehabilitation services and outcomes for persons

with TBI. This project provides a multidisciplinary system of rehabilitation care specifically designed to meet

the needs of individuals with TBI, and, as demonstrated over the past four years as a TBIMS, adequately

enrolls subjects to complete research projects successfully. In addition to contributing data to the TBI

National Database, the UAB TBIMS conducts two research projects: (1) an examination of the use of a

serotonin agonist medication (sertraline) to lessen the incidence and severity of depression during the first

year of recovery following TBI; (2) a study of the impact of a training program in problems solving for

caregivers.
2-22 NIDRR Program Directory FY 2006 - Health and Function

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

California

Northern California Traumatic Brain Injury Model System of Care

Santa Clara Valley Medical Center (SCVMC)

Rehabilitation Research Center

751 South Bascom Avenue

San Jose, CA 95128

jerry.wright@hhs.co.scl.ca.us

www.tbi-sci.org

Principal Investigator: Tamara Bushnik, PhD

Public Contact: 408/793-6433; Fax: 408/793-6434

Project Number: H133A020524

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $364,038; FY 03 $364,588; FY 04 $364,745; FY 05 $364,956; FY 06

$353,426

Abstract: This project conducts two studies to better characterize the type and impact of fatigue on the

TBI population: (1) a cross-sectional study of people up to ten years post-TBI and (2) a longitudinal study

that focuses on the evolution of fatigue over the first two years post-injury. Both studies utilize standardized

measurements of fatigue, as well as those for depression/affective disorders, sleep disturbance, activity

scales, and measurements of hormone levels reflective of the health of the neuroendocrine system. Two

additional studies characterize the impact of late posttraumatic seizures on recovery: (1) a study utilizing data

already in the TBIMS National Database that compares the functional, vocational, and medical complication

outcomes of those with and without late posttraumatic seizures; (2) a study in collaboration with Denver

Hospital Medical Center that interviews individuals at both sites who participated in a previously funded

NIDRR grant on seizure risk identification. This study further evaluates barriers to the environment, transportation, and challenges in control of their seizures.
NIDRR Program Directory FY 2006 - Health and Function 2-23

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Colorado

The Rocky Mountain Regional Brain Injury System (RMRBIS)

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

charrison-felix@craighospital.org

www.craighospital.org

Principal Investigator: Gale G. Whiteneck, PhD 303/789-8204

Public Contact: Cynthia Harrison-Felix, PhD 303/789-8565; Fax: 303/789-8441

Project Number: H133A020510

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000; FY 06

$365,000

Abstract: The Rocky Mountain Regional Brain Injury System (RMRBIS) conducts three research

projects. Study 1 examines the effects of Modafinil on fatigue and excessive sleepiness after TBI. Study 2

assesses the effectiveness of a group therapy intervention for social pragmatic communication. Study 3 uses

the unique database assets of Craig Hospital and investigates the environmental and clinical factors that

influence outcome over a 40-year time frame to understand the process of living and aging with a TBI. In

addition to clinical research and service, Craig Hospital, as the RMRBIS, documents an outstanding record

of dissemination, for all customers including clinical consumers, community agencies and advocacy groups,

other clinical service centers and systems, and professionals engaged in the treatment of persons with TBI.
2-24 NIDRR Program Directory FY 2006 - Health and Function

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Massachusetts

The Spaulding/Partners TBI Model System at Harvard Medical School

Spaulding Rehabilitation Hospital

125 Nashua Street

Boston, MA 02114

toneilpirozzi@partners.org

spauldingrehab.org/body.cfm?id=185

Principal Investigator: Mel B. Glenn, MD 617/573-2625

Public Contact: Therese O’Neil-Pirozzi, ScD 617/573-2456; Fax: 617/573-2469

Project Number: H133A020513

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000; FY 06

$365,000

Abstract: The Spaulding TBI Model System (TBIMS) provides a comprehensive spectrum of care for

people with TBI through the collaborative efforts of three hospitals that are part of Partners Health Care

System, Inc., and four organizations that operate a variety of postacute rehabilitation programs. Research at

the center includes development of functional neuroimaging as a tool to guide cognitive rehabilitation treatment for people with TBI, and use of functional magnetic resonance imaging (fMRI), with both a crosssectional and longitudinal component. The cross-sectional component assesses regional brain activation

during the memorization of word lists, both under undirected (spontaneous) conditions and following training

and cueing to use a categorization strategy. The longitudinal component studies the ability of the fMRI

findings to predict outcome among people with TBI who participate in community integration program with

a cognitive rehabilitation focus.
NIDRR Program Directory FY 2006 - Health and Function 2-25

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Michigan

Southeastern Michigan Traumatic Brain Injury System (SEMTBIS)

Wayne State University and Rehabilitation Institute of Michigan

Department of Physical Medicine and Rehabilitation

261 Mack Boulevard

Detroit, MI 48201

rhanks@dmc.org

www.semtbis.org

Principal Investigator: Robin A. Hanks, PhD 313/745-9763

Public Contact: Jeffrey Wertheimer, PhD 313/745-9763; Fax: 313/966-7502

Project Number: H133A020515

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $364,996; FY 03 $364,995; FY 04 $364,997; FY 05 $364,992; FY 06

$364,991

Abstract: The Southeastern Michigan Traumatic Brain Injury System (SEMTBIS) program conducts

projects developed with the help of SEMTBIS consumers, as well as other members of the Detroit community. There are three principal studies during this grant cycle: (1) a peer-mentoring intervention: This study is

a randomized controlled trial of a peer-mentoring program for both survivors and their caregivers; (2) a

dynamic system of survivor and significant-other well-being: This investigation studies 250 communitydwelling adults with TBI and their caregivers/significant others, exploring the relationship of survivorcaregiver situations with survivor distress and family dysfunction. It also studies whether or not social

support acts as a moderating influence upon the well-being of persons with TBI; (3) resumption of driving

after brain injury: This study examines correlates of driving after brain injury: barriers, fitness to drive, and

community rapport. Participatory action is a central component of project implementation, evaluation, and

dissemination. SEMTBIS participates in clinical and systems analysis studies of the TBI Model Systems by

collecting and contributing data to the uniform, standardized national database. Project findings for the

studies described above are available at: TBINDC.org or tbindc.org/registry/

searchresults.php?searchparam=project/center/4
2-26 NIDRR Program Directory FY 2006 - Health and Function

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Minnesota

Mayo Clinic Traumatic Brain Injury Model System

Mayo Medical Center

200 First Street

Rochester, MN 55905

malec.james@mayo.edu

www.mayo.edu/model-system

Principal Investigator: James F. Malec, PhD

Public Contact: Anne Moessner 507/255-3116; Fax: 507/255-7696

Project Number: H133A020507

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 02 $364,891; FY 03 $364,738; FY 04 $363,786; FY 05 $364,993; FY 06

$364,537

Abstract: This Traumatic Brain Injury Model System (TBIMS) focuses on three local research projects:

(1) decision-making and outcomes of inpatient and outpatient rehabilitation pathways, (2) very-long-term

(5-15+ years postinjury) process and outcome for people with TBI, identified through the Rochester

Epidemiology Project, and (3) telehealth-based (Internet) cognitive rehabilitation. Telehealth is a potentially

important innovation in this system’s region, where distance limits access to medical and rehabilitation

services and many consumers have limited access to health care, insurance, employment, and viable political

representation. In addition to professional publications and presentations, continuing dissemination efforts

include the Mayo Clinic TBIMS website, the TBI Hotline, the Messenger newsletter, contributions to the

COMBI web site and COMBI and TBIMS newsletters, and regular participation by Mayo Clinic TBIMS

staff at all annual state brain injury association meetings in the extended five-state geographical region.

During the next five years, the project plans to develop an advocacy training program to help people with

TBI and their families and significant others in the region learn self-advocacy skills. Members of the Mayo

TBI Regional Advisory Council were proactively involved in developing this project.
NIDRR Program Directory FY 2006 - Health and Function 2-27

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Mississippi

Traumatic Brain Injury Model System of Mississippi (TBIMSM)

Methodist Rehabilitation Center

Brain Injury Program

1350 East Woodrow Wilson Center

Jackson, MS 39216

marks@mmrcrehab.org

www.mmrcrehab.org

Principal Investigator: Mark Sherer, PhD, ABPP-Cn

Public Contact: 601/364-3448; Fax: 601/364-3558

Project Number: H133A020514

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000; FY 06

$365,000

Abstract: The TBI Model System of Mississippi (TBIMSM) is a collaborative project of Methodist

Rehabilitation Center and the University of Mississippi Medical Center. This project involves three studies.

The first study investigates two medications in a parallel group, double blind, placebo controlled, randomized assignment design. The drugs under investigation have differing neurotransmitter effects, although each

drug has been reported to have therapeutic benefit. The target population for this study is persons with TBI

who are in a state of posttraumatic confusional state (PCS). This is considered a state-of-the-art approach

to PCS given the severe lack of controlled research to measure medication usage in PCS. The second study

develops and conducts a trial of an intervention to improve the therapeutic alliances between persons with

TBI and family members and professional staff serving persons with TBI in a post-acute brain injury

neurorehabilitation program (PABIR). The third research project investigates the use of transcranial magnetic stimulation (TMS) to improve the characterization of motor disorders after TBI. Current research

suggests that improved use and better understanding of TMS technology will lead to new intervention trials

to improve motor function after TBI.
2-28 NIDRR Program Directory FY 2006 - Health and Function

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

New Jersey

JFK-Johnson Rehabilitation Institute TBI Model System

JFK Johnson Rehabilitation Institute

2048 Oak Tree Road

Edison, NJ 08820

tbims@solarishs.org

www.njrehab.org/tbims

Principal Investigator: Keith D. Cicerone, PhD

Public Contact: 732/906-2640; Fax: 732/906-9241

Project Number: H133A020518

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000; FY 06

$365,000

Abstract: This project implements and evaluates innovative rehabilitation interventions that address the

spectrum of severity and needs of persons with TBI. The first research study investigates the relationship

between neurobehavioral (i.e., standardized rating scale) and neurophysiologic (i.e., functional MRI data)

indices of brain function in persons with traumatic minimally conscious state (MCS). The second study

addresses current clinical and methodological concerns over the effectiveness of cognitive rehabilitation on

cognitive functioning, community integration and social participation, return to school and work, and quality

of life after traumatic brain injury. The third study uses qualitative inquiry to describe the quality of life after

TBI from the perspective of persons at various stages after their injuries. These findings are triangulated with

quantitative indices of community integration and satisfaction with functioning, which should provide a richer

and more authentic understanding of what it takes to live a fulfilling life after traumatic brain injury.
NIDRR Program Directory FY 2006 - Health and Function 2-29

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

New York

New York Traumatic Brain Injury Model System (NYTBIMS)

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

Research and Training Center

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

www.mssm.edu/nytbims

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372; Fax: 212/348-5901

Project Number: H133A020501

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000; FY 06

$365,000

Abstract: This project advances the understanding of TBI and its consequences and improves rehabilitation

outcomes. The research projects focus on depression and fatigue, impairments that limit participation in

community and vocational activities: Treatment of Post-TBI Depression is a randomized clinical trial to

examine the efficacy of sertraline (Zoloft) in the treatment of depression and anxiety after traumatic brain

injury. Study of Post-TBI Fatigue and its Treatment investigates the components, consequences, and

correlates of post-TBI fatigue, and in a randomized clinical trial, evaluates the benefits of modafinil (Provigil)

to treat fatigue in individuals with TBI.
2-30 NIDRR Program Directory FY 2006 - Health and Function

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

North Carolina

Carolinas Traumatic Brain Injury Rehabilitation and Research System

(CTBIRRS)

Charlotte Mecklenburg Hospital Authority

Charlotte Institute of Rehabilitation

1100 Blythe Boulevard

Charlotte, NC 28203

fhammond@carolinas.org

www.carolinas.org

Principal Investigator: Flora M. Hammond, MD

Public Contact: 704/355-4330; Fax: 704/355-0709

Project Number: H133A020522

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000; FY 06

$365,000

Abstract: This project investigates posttraumatic irritability, its relationship to the caregiver as a component

of the environment, the reaction to amantadine hydrochloride, and the nature of the problem as experienced

by those in the community. The mission of CTBIRRS is to improve care and outcomes for survivors of TBI

through medical treatments, services, research, and dissemination to expand and enhance services throughout their lifetime. The system begins with prevention and emergency medical services and extends through

intensive care, acute care, and comprehensive medical rehabilitation to long-term follow-up, community

reintegration, and vocational rehabilitation.
NIDRR Program Directory FY 2006 - Health and Function 2-31

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Ohio

Ohio Regional TBI Model System

Ohio Valley Center for Brain Injury Prevention and Rehabilitation

Department of Physical Medicine and Rehabilitation

 Ohio State University

Dodd Hall; 480 West Ninth Avenue

Columbus, OH 43210

lamb-hart.1@osu.edu

www.ohiovalley.org

Principal Investigator: John D. Corrigan, PhD 614/293-3830

Public Contact: Gary Lamb-Hart 614/293-3802; Fax: 614/293-8886

Project Number: H133A020503

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $365,000; FY 03 $364,995; FY 04 $364,970; FY 05 $364,885; FY 06

$364,957

Abstract: This model system includes two local research projects on substance abuse and persons with

TBI. Study 1 is a randomized clinical trial testing interventions to promote retention in substance abuse

treatment. This study employs intervention strategies found effective for clients with TBI when first engaging

with a treatment program. Study 2 tests the concurrent validity of an instrument that documents the extent of

a person’s prior history of TBI objectively. This instrument is intended for research on TBI as a mediating

factor in substance abuse treatment. This model system utilizes innovative community integration programs:

Team Brain Injury (follow-up case management), the TBI Network (substance abuse treatment), and

Community Capacity Building (education and advocacy operated in conjunction with the Brain Injury

Association of Ohio).
2-32 NIDRR Program Directory FY 2006 - Health and Function

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Pennsylvania

The Moss Traumatic Brain Injury Model System

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

1200 West Tabor Road, Korman Suite 213

Philadelphia, PA 19141

thart@einstein.edu

www.einstein.edu/facilities/mossrehab/index.html

Principal Investigator: Tessa Hart, PhD

Public Contact: 215/456-6544; Fax: 215/456-5926

Project Number: H133A020505

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000; FY 06

$365,000

Abstract: This project provides cutting-edge care for persons with TBI, conducts research on treatment of

TBI in three key areas, and disseminates new knowledge to consumer and professional audiences, using an

extensive collaborative network. Seven Trauma Centers and two nationally renowned rehabilitation facilities,

MossRehab and Magee Rehabilitation, collaborate in the clinical component of the Moss Traumatic Brain

Injury Model System. The Moss Rehabilitation Research Institute administers the research component,

which includes collaborative longitudinal data collection, as well as three local research projects on: (1) the

use of assistive technology for cognitive and behavioral disabilities, (2) validation of an observational rating

scale of attention dysfunction in a psychostimulant treatment trial, and (3) use of botulinum toxin for treating

severe spasticity caused by TBI. The Moss TBIMS emphasizes consumer involvement in clinical program

improvement, research design, and dissemination via collaboration with the Brain Injury Association of

Pennsylvania and other consumers.
NIDRR Program Directory FY 2006 - Health and Function 2-33

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Pennsylvania

University of Pittsburgh Brain Injury Model System (UPBI)

University of Pittsburgh

School of Medicine

3471 Fifth Avenue

Suite 201 Kaufmann Building

Pittsburgh, PA 15213

zafonterd@msx.upmc.edu

www.umc.pitt.edu/tbi/

Principal Investigator: Ross D. Zafonte, DO

Public Contact: 412/648-6979; Fax: 412/692-4410

Project Number: H133A020502

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 02 $364,484; FY 03 $360,375; FY 04 $362,875; FY 05 $362,875; FY 06

$362,875

Abstract: The research focus of the University of Pittsburgh Brain Injury Model System is on innovation in

rehabilitation technology for persons with TBI. The project evaluates the impact of selected innovations in

technology on service delivery, functional outcome, and as a therapeutic intervention. It addresses the

shortcoming in wheelchair design for persons with brain injury by evaluating a unique, personalized powered

mobility system. Collaboration with the Robotics Institute at Carnegie Mellon University allows researchers

to perform a randomized trial evaluating the efficacy of virtual reality and robotics for persons with TBI.

Finally, the project uses intelligent navigation technology to implement and evaluate a web-based virtual case

manager support structure for persons with TBI and their families.
2-34 NIDRR Program Directory FY 2006 - Health and Function

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Texas

North Texas Traumatic Brain Injury Model System (NT-TBIMS)

The University of Texas Southwestern Medical Center

Department of Neurology

5323 Harry Hines Boulevard

Dallas, TX 75390-9036

caryn.harper@utsouthwestern.edu

www.utsouthwestern.edu

Principal Investigator: Ramon R. Diaz-Arrastia, MD, PhD 214/648-6409

Public Contact: Caryn R. Harper, MS, Project Manager 214/648-7613; Fax: 214/648-3143

Project Number: H133A020526

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $364,999; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000; FY 06

$365,000

Abstract: The North Texas Traumatic Brain Injury Model System (NT-TBIMS) provides a comprehensive

continuum of care for TBI patients from the time of arrival at the emergency department through the intensive care unit, inpatient and outpatient rehabilitation, and long-term follow-up after community integration.

Additionally, the NT-TBIMS conducts two research projects aimed at obtaining predictive information

regarding outcome after TBI, which is important to the goal of developing novel therapies and tailoring these

therapies to individual patients: (1) to determine whether the inheritance of particular alleles in certain

candidate genes is associated with a greater risk of poor outcome after TBI; and (2) to determine whether

Diffusion Tensor Magnetic Resonance Imaging, a novel imaging technique, is a more reliable indicator of

Diffuse Axonal Injury than standard structural MRI.
NIDRR Program Directory FY 2006 - Health and Function 2-35

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Virginia

Virginia Commonwealth Traumatic Brain Injury Model System

Virginia Commonwealth University

Department of Physical Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0452

jmarwitz@mail2.vcu.edu

www.tbi.pmr.vcu.edu

Principal Investigator: Jeffrey S. Kreutzer, PhD 804/828-9055

Public Contact: Jennifer Marwitz 804/828-3704; Fax: 804/828-2378

Project Number: H133A020516

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000; FY 06

$365,000

Abstract: This project, utilizing rigorous scientific methods, examines the benefits of intervention during the

acute and post-acute periods after brain injury. TBIMS and other researchers have primarily focused on

delineating outcomes. Until recently, concerns about survivors’ emotional well-being and adjustment to

injury received scant attention. Yet, recent studies have identified a high prevalence of depression, with many

survivors reporting feelings of hopelessness, diminished self-esteem, and social isolation. Brain injury also

affects the family system; family members commonly describe emotional distress, lack of respite, financial

stress, and lack of community support. Projects in three major research areas focus predominantly on

survivors. One study examines pharmacological approaches to the treatment of depression, while another

examines a structured approach to the treatment of acute cognitive and neurobehavioral problems. Examining the benefits of intervention programs for family members is the third major research area.
2-36 NIDRR Program Directory FY 2006 - Health and Function

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Washington

University of Washington Traumatic Brain Injury Model System

University of Washington

Department of Rehabilitation Medicine

Box 356490, BB-953 Health Sciences

Seattle, WA 98195

krbell@u.washington.edu

depts.washington.edu/rehab/tbi

Principal Investigator: Kathleen R. Bell, MD

Public Contact: 206/685-0935; Fax: 206/685-3244

Project Number: H133A020508

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000; FY 06

$365,000

Abstract: This program conducts research relevant to TBI, enhances services to consumers, and furthers

the National Database and intersystem collaboration. The program’s three research projects are: (1) a

randomized controlled intervention study examining the effect of exercise on depression after TBI. This lowcost, community intervention seeks to combat depression and emotional distress in persons with stable TBI

by employing exercise as a positive approach to improved emotional and physical functioning and socialization. (2) An examination of the characteristics of TBI survivors who are able to return to employment and

hold jobs that are stable and complex in nature, utilizing both the UW TBI longitudinal database and the

Model System database. (3) An examination of the impact of the Medicare prospective payment system for

inpatient rehabilitation on TBI survivors receiving access to acute rehabilitation efforts. The program also

contributes to the National Database.
NIDRR Program Directory FY 2006 - Health and Function 2-37

Model Burn Injury Systems Model Burn Injury Systems

Colorado

UCHSC Burn Model System Data Coordination Center (BMS/DCC)

University of Colorado Health Sciences Center

School of Medicine

Department of Preventive Medicine and Biometrics

4200 East Ninth Avenue, Box B119

Denver, CO 80262

rebecca.sloan@uchsc.edu

bms-dcc.uchsc.edu

Principal Investigator: Dennis C. Lezotte, PhD 303/315-6873

Public Contact: Rebecca Sloan, Project Coordinator 303/315-0320; Fax: 303/315-3183

Project Number: H133A020402

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $249,997; FY 03 $249,995; FY 04 $249,997; FY 05 $249,999; FY 06

$249,998

Abstract: The UCHSC Burn Model System Data Coordination Center (BMS/DCC) establishes a data

management and analytical support facility for Burn Model Systems clinical and outcomes research projects.

Objectives include: (1) to serve the clinical, research, and public communities to which it is responsible; (2)

to serve the needs of good scientific procedure in multi-institutional outcomes research; and (3) to support

the needs for patient safety and data confidentiality as required by Federal regulations when conducting

collaborative clinical studies. The BMS Project is structured as a set of interacting, observational, randomized, and quasi-experimental clinical studies run at different centers that share the common purpose of

acquiring and disseminating knowledge about burn injury care and rehabilitation. The project offers support

in four important areas: project management, data management, analytical support, and dissemination.

Support is provided in developing appropriate integrated systems to affect national data collection, project

management, data coordination, technical support, collaborative clinical projects, scientific conduct, scientific publication, and effective dissemination. The UCHSC BMS/DCC continues to accumulate and integrate

a central repository of data from the Model Systems to enhance their abilities to make sentinel statements

and change the way burn injury rehabilitation is done. While the main function of the DCC is to integrate and

manage these data, it also needs to be responsive to the technical and analytical needs of these individual

clinical centers. In addition the DCC provides and coordinates statistical support among the clinical and

statistical groups from each Burn Center and is prepared to expand this support, adding several new

protocols and/or clinical studies where appropriate.
2-38 NIDRR Program Directory FY 2006 - Health and Function

Model Burn Injury Systems Model Burn Injury Systems

Maryland

Johns Hopkins University Burn Injury Rehabilitation Model System

(JHU-BIRMS)

Johns Hopkins School of Medicine

Johns Hopkins Burn Center Adult Unit

Johns Hopkins Bayview Medical Center Pediatric Unit

Johns Hopkins Hospital

4940 Eastern Avenue

Baltimore, MD 21224

mbresni1@jhmi.edu

www.hopkinsmedicine.org/burn/research/index.html

www.hopkinsmedicine.org/burn/research/psqscq.pdf

Principal Investigator: James A. Fauerbach, PhD 410/550-0894

Public Contact: Melissa Bresnick 410/550-9846; Fax: 410/550-8161

Project Number: H133A020101

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $298,928; FY 03 $299,995; FY 04 $299,753; FY 05 $298,311; FY 06

$299,911

Abstract: This project tests interventions targeting three common postburn secondary complications

affecting health and function: generalized deconditioning, muscle atrophy, and acute stress disorder. Testing

the effectiveness of these interventions holds promise for improving the health and function of burn survivors

as well as enhancing their options for workplace and community reintegration. The JHU-BIRMS includes

several projects: (1) testing the efficacy of its augmented exercise program in rehabilitating people with

generalized deconditioning, (2) testing the efficacy of enhanced cognitive-behavioral therapy in treating

individuals with acute stress disorder and preventing the development of chronic posttraumatic stress

disorder, (3) developing a new measure that quantifies the degree of social stigmatization experienced by

burn survivors and its impact on emotional adjustment and integration into the workplace and the community

(this project involves the Phoenix Society, the largest foundation supporting burn survivors and their significant others), (4) a collaborative effort with the University of Washington on a workplace integration study

identifying and quantifying those factors interfering with early and complete return to work, and (5) a collaborative study on health and function with the University of Texas.
NIDRR Program Directory FY 2006 - Health and Function 2-39

Model Burn Injury Systems Model Burn Injury Systems

Texas

North Texas Burn Rehabilitation Model System (NTBRMS)

The University of Texas Southwestern Medical Center

Department of Physical Medicine and Rehabilitation

5323 Harry Hines Boulevard

Dallas, TX 75390-9136

radha.holavanahalli@utsouthwestern.edu

www.utsouthwestern.edu/utsw/home/research.ntbrms

Principal Investigator: Karen Kowalske, MD 214/648-2288

Public Contact: Radha Holavanahalli, PhD 214/648-9540; 214/648-3654; Fax: 214/648-2005

Project Number: H133A020104

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000; FY 03 $300,000; FY 04 $300,000; FY 05 $300,000; FY 06

$300,000

Abstract: This project conducts five research projects, two collaborative and three site-specific: (1)

barriers to return-to-work following major burn injury; (2) long-term outcome following major burn injury;

(3) outcome following deep, full-thickness hand burns; (4) the evolution over time of burn-associated

neuropathy; and (5) the socioeconomic determinants of disability in individuals with burn injury. The North

Texas Burn Rehabilitation Model System (NTBRMS) is a collaboration of Parkland Health and Hospital

System (PHHS) and the University of Texas, Southwestern Medical Center (UTSW). Collaboration occurs

on many levels at the NTBRMS. Clinical collaboration is the hallmark of the burn team, which includes

individuals from several institutions who work together seamlessly, as well as collaboration with rural care

providers through rural clinics and a biannual seminar. Research collaboration occurs locally with the surgeons and academic computing staff, and nationally with the other model systems.
2-40 NIDRR Program Directory FY 2006 - Health and Function

Model Burn Injury Systems Model Burn Injury Systems

Texas

Pediatric Burn Injury Rehabilitation Model System

University of Texas Medical Branch

815 Market Street, Route 1220

Galveston, TX 77550

dherndon@utmb.edu

patblakeney@earthlink.net

Jlbailey@utmb.edu

Principal Investigator: David Herndon, MD 409/770-6731

Public Contact: Pat Blakeney, PhD 409/770-6718 or 713/661-1745; 409/770-6731;; Fax: 713/661-

2871; 409/770-6919

Project Number: H133A020102

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000; FY 03 $300,000; FY 04 $300,000; FY 05 $300,000; FY 06

$300,000

Abstract: This program conducts independent and multi-center projects focusing on evaluating and improving the rehabilitation provided to the burned child, striving to decrease disability and improve reintegration

into society. The project continues longitudinal assessments of patients, expanding the database that includes

measures of cardiopulmonary function, physical growth and maturation, bone density, range of motion,

activities of daily living, scar formation, reconstructive needs, and measures of psychosocial adjustment. This

data is used to identify areas that require improvement and provide functional outcome measures that can be

used in the evaluation of treatment methods. Research activities include: (1) a multi-center project assessing

the efficacy of the long-term administration of oxandrolone in the treatment of burn injury with endpoints of

improved strength, lean body mass, bone density, and growth; (2) improving rehabilitative outcomes for

children by instituting and evaluating major modifications to current treatment for children with large burns;

(3) evaluating the use of pressure garments in controlling scar following burn injury; (4) a multi-center study

evaluating the relationship between treatment, injury, patient characteristics, and patient outcome in those

patients sustaining full thickness hand burns; and (5) evaluating acute stress disorder and posttraumatic

stress disorder, including its occurrence, predictive elements, and efficacy of treatment.
NIDRR Program Directory FY 2006 - Health and Function 2-41

Model Burn Injury Systems Model Burn Injury Systems

Washington

University of Washington Burn Injury Rehabilitation Model System

University of Washington

Department of Surgery, Division of Plastic Surgery

Harborview Medical Center; 325 Ninth Avenue

Box 359796

Seattle, WA 98104

rassilon@u.washington.edu

faculty.washington.edu/engrav/index.html

Principal Investigator: Loren H. Engrav, MD 206/731-3183

Public Contact: Adrian Nelsen 206/731-2938; Fax: 206/731-3656

Project Number: H133A020103

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000; FY 03 $300,000; FY 04 $300,000; FY 05 $300,000; FY 06

$300,000

Abstract: This model system conducts five research projects: (1) A New Approach to the Etiology of

Hypertrophic Scarring: develops an increased understanding of hypertrophic scarring. (2) Effect of Virtual

Reality on Active Range-of-Motion During Physical Therapy: uses distraction via immersive virtual reality as

an adjunctive non-pharmacologic analgesic. This study tests the hypothesis that virtual reality allows patients

to tolerate greater stretching during physical therapy compared to no distraction, and that in spite of achieving greater range-of-motion, patients still experience lower pain levels while in virtual reality. (3) Determination of Reasons for Distress in Burn-Injured Adults: identifies reasons behind a burn survivor’s distress at

various time-points after hospital discharge. (4) Barriers for Return to Work: identifies specific barriers to

return to work for burn survivors. (5) Acute Stress Disorder Among Burn Survivors: evaluates the effectiveness of cognitive-behavioral therapy, relative to a non-directive, supportive therapy control group, and a

national comparison sample in reducing the prevalence of posttraumatic stress disorder diagnosis and

symptom severity. Projects 4 and 5 are collaborative. In addition this project participates in the national

database.
2-42 NIDRR Program Directory FY 2006 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Alabama

UAB Model Spinal Cord Injury Care System

University of Alabama/Birmingham

Spain Rehabilitation Center

619-19th Street South SRC 529

Birmingham, AL 35249-7330

mott@uab.edu

main.uab.edu/show.asp?durki=10712

Principal Investigator: Amie B. Jackson, MD 205/934-3330

Public Contact: Pamela K. Mott, Director, Research Services 205/934-3283 (V); 205/934-4691 (TTY);

Fax: 205/975-4642

Project Number: H133N060021

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 06 $474,471

Abstract: The University of Alabama at Birmingham provides rehabilitation services specifically designed to

meet the special needs of individuals with spinal cord injury (SCI) through its multidisciplinary, comprehensive Spinal Cord Injury Care System (UAB-SCICS). The UAB-SCICS spans the clinical continuum from

emergency services through rehabilitation and community re-entry. The System’s research includes one

collaborative research module and two in-house research projects, all of which ultimately aim at improving

the health and function of its constituents. The collaborative research module involves the validation of an

outcome measure for functional recovery. One in-house research project involves the assessment of the

predictive value of key parts of the neurological exam for return of bladder function; the second is an

investigation of the effect of nicotine on different types of SCI pain. The project continues to benefit from the

active involvement of persons with SCI in the design and execution of the proposed activities. Project

results are disseminated via a variety of accessible formats and venues for both professionals and persons

with SCI and their families. A detailed plan of operation ensures timely completion of project goals and

tasks. Finally, an evaluation plan has been designed to assess the quality and timeliness of project outcomes

and dissemination, as well as short and long term impacts of project activities. Activities of the UAB-SCICS

reflect an active partnership both within the components of UAB’s health system and between UAB, the

Lakeshore Foundation, and the Birmingham VA Medical Center. The project continues as a participant in

data collection activities for the National Spinal Cord Injury Statistical Center.
NIDRR Program Directory FY 2006 - Health and Function 2-43

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

California

Regional Spinal Cord Injury Care System of Southern California

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, HB117

Downey, CA 90242-4155

rwaters@larei.org; radkins@larei.org

Principal Investigator: Robert L. Waters, MD; Rod Adkins, PhD; 562/401-7048

Public Contact: 562/401-8956; Fax: 562/401-7897

Project Number: H133N000029

Start Date: September 01, 2000

Length: 72 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $345,000; FY 01 $345,000; FY 02 $345,000; FY 03 $345,000; FY 04

$345,000; FY 05 $345,000; FY 06 $0 (No-cost extension through 8/31/2007)

Abstract: The Regional Spinal Cord Injury Care System of Southern California’s primary mission is to

collect initial and follow-up data on persons who have sustained spinal cord injuries and submit it to the

national statistics database at the University of Alabama at Birmingham. Another component of the project

focuses on literacy in individuals with SCI. Also, the project identifies, evaluates, and eliminates environmental barriers, particularly cultural and social barriers, to enable people with SCI to reintegrate fully into their

community, and thus improve their lives. The project has been designed to meet the needs of the approximately 75 percent minority and underserved populations that comprise its clientele, and has samples sufficient for achieving adequate statistical power in the relevant designs and producing meaningful research.

Finally, the System contributes new and useful information to the current collection of SCI literature. This

project contributes to the national statistics database at the University of Alabama at Birmingham.
2-44 NIDRR Program Directory FY 2006 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Colorado

The Rocky Mountain Regional Spinal Injury System

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

susie@craighospital.org

www.craighospital.org

Principal Investigator: Daniel P. Lammertse, MD; Susan Charlifue, PhD; 303/789-8220

Public Contact: Susan Charlifue, PhD 303/789-8306 (V); 303/789-8575 (TTY);; Fax: 303/789-8441

Project Number: H133N060005

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $489,000

Abstract: The Rocky Mountain Regional Spinal Injury System (RMRSIS) goals are to: (1) implement a

program of research focusing on the immediate and long-term health, function, and community integration

and participation of people with SCI; (2) improve its existing lifetime system of care for people with SCI;

and (3) continue exemplary participation in the National SCI Database. A site-specific study determines if

high vs. low tidal volumes are more effective in achieving ventilator weaning for individuals with high level

tetraplegia, using a randomized clinical trial design. A collaborative research module study involves the

development of a reliable, valid measurement tool to assess community participation. RMRSIS was first

designated as a Regional Model System in 1974. The system includes two Level I trauma centers with

specialized acute neurotrauma care facilities (St. Anthony Hospital and Swedish Medical Center) and the

rehabilitation and lifetime follow-up services of Craig Hospital.
NIDRR Program Directory FY 2006 - Health and Function 2-45

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

District of Columbia

National Capital Spinal Cord Injury Model System

National Rehabilitation Hospital

MedStar Research Institute

102 Irving Street, NW

Washington, DC 20010

www.sci-health.org

www.ncscims.org

Principal Investigator: Suzanne L. Groah, MD 202/877-1196

Public Contact: Donal Lauderdale, MSE 202/877-1425; Fax: 202/726-7521

Project Number: H133N060028

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 06 $449,417

Abstract: The National Capital Spinal Cord Injury Model System (NCSCIMS) serves Washington, DC

and the nation. By focusing on the frequent and costly complication of pressure ulcers (PU), the NCSCIMS

leverages two unique strengths: an existing Rehabilitation Research and Training Center on SCI that focuses

on reduction of secondary conditions, and the population of Washington, DC, which is predominantly

composed of underserved individuals. The Center includes two site-specific and one modular project and

describes a system of care that meets SCIMS priorities: Site Specific Project 1 is a Practice-Based Evidence (PBE) project specifically focused on PU prevention for all individuals with SCI and/or disease

(SCUD) during the acute and rehabilitative phases of care (to evolve to the community in later phases). The

PBE approach allows a detailed examination of the effects of methods, modalities, and therapies utilized in

rehabilitation to prevent PUs, which are often based on evidence-based medicine, but in reality, may not be

extrapolated to the broader population with SCUD. In this project, researchers aim to utilize a PBE approach to augment evidence-based practice while addressing a critical secondary complication for individuals with SCI. Site Specific Project 2 is an SCI Navigator pilot project that combines elements of Peer

Mentoring and Patient Navigation to decrease the occurrence of PUs once the individual has returned to the

community. In this project, an SCI Navigator assists people with newly-acquired SCI in the transition from

inpatient rehabilitation to the community, within the framework of an, at times, dysfunctional healthcare

system. The NCSCIMS works with the Model System at the University of Pittsburg to explore Assistive

Technology for Mobility (ATM). In this project, researchers investigate the degree to which inadequate

wheelchair technology is the factor preventing people with SCI from doing more, work to understand the

impact of changes in wheelchair reimbursement, and fully explore the issue of disparity in ATM prescription.
2-46 NIDRR Program Directory FY 2006 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Georgia

Georgia Regional Spinal Cord Injury Care System

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road Northwest

Atlanta, GA 30309-1465

lesley_hudson@shepherd.org

www.shepherd.org

Principal Investigator: David F. Apple, Jr., MD 404/350-7353

Public Contact: Lesley M. Hudson, MA, Co-Project Director 404/350-7591; Fax: 404/355-1826

Project Number: H133N060009

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $474,417

Abstract: The Georgia Regional Spinal Cord Injury Care System admits approximately 200 individuals

annually with acute onset paralysis secondary to spinal cord injury, and collects post-discharge data on 600

individuals each year. Its patient population comes primarily from Georgia, the rest of the Southeast, and the

Eastern Seaboard. The continuum of care begins at injury and continues through transport, assessment,

acute care, rehabilitation, emotional adjustment, community reintegration, and lifetime follow-up. The project

continues a long record of comprehensive and timely collection of data on subjects who meet the inclusion

criteria in three categories: inpatient hospitalization; longitudinal collection at 1, 5, 10, 15, 20, and 25 years

post-injury; and registry. In addition to continued model system research, the project conducts two site

specific research projects: (2) Psychological Status During Inpatient Rehabilitation and One Year After

Onset: Stress, Coping, and Expectation Hope for Recovery; and (2) Development and Validation of a

Clinical Measure of Wheelchair Seat Cushion Degradation. The project also manages a collaborative data

collection research module entitled Impact of SCI on Labor Market Participation.
NIDRR Program Directory FY 2006 - Health and Function 2-47

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Illinois

Midwest Regional Spinal Cord Injury Care System (MRSCIS)

Rehabilitation Institute of Chicago

345 East Superior Street, Room 1146

Chicago, IL 60611

dchen@ric.org

Principal Investigator: David Chen, MD

Public Contact: 312/238-0764

Project Number: H133N060014

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 06 $484,000

Abstract: The Spinal Cord Injury Rehabilitation Program at the Rehabilitation Institute of Chicago and the

Acute Spinal Cord Injury Program at Northwestern Memorial Hospital demonstrate the ongoing comprehensive, multidisciplinary services that are provided to individuals with SCI which allow them to optimize

their rehabilitation outcomes and enhance their ability to return to productive, independent living in the

community. In order to contribute to the improvement of outcomes for persons with SCI, the System

conducts two site-specific research projects: (1) Development of Low-Cost Devices to Increase Delivery

of Intensive Treadmill Training, and (2) Disparities in Access to and Outcomes of Rehabilitation Care for

Medicare and Medicaid Beneficiaries with Spinal Cord Injury. In addition, the project includes collaboration

on one research project, Assistive Technology for Mobility (ATM) Module. MRSCICS has the capacity to

enroll 140 individuals from culturally diverse backgrounds with new spinal cord injuries annually into the

Spinal Cord Injury Model Systems database, and collect follow-up data on individuals enrolled between

1973 and 2000.
2-48 NIDRR Program Directory FY 2006 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Massachusetts

The New England Regional Spinal Cord Injury Center

Boston University Medical Center Hospital

Department of Rehabilitation Medicine

Preston F-511

732 Harrison Avenues

Boston, MA 02118-2393

jane.wierbicky@bmc.org

www.bumc.bu.edu/Dept/Content.aspx?DepartmentID=91&PageID=332

Principal Investigator: Steve Williams, MD

Public Contact: Jane Wierbicky; Claudine DeJoie 617/638-7316 (Wierbicky)617/638-7389 (DeJoie);

Fax: 617/638-7313

Project Number: H133N060024

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 06 $464,417

Abstract: The New England Regional Spinal Cord Injury Center (NERSCIC), based at Boston Medical

Center, continues to forge new pathways in the care and quality of life of people with traumatic spinal cord

injury (SCI). Additionally, NERSIC maintains a research partnership with Boston’s Spaulding Rehabilitation

Hospital, Northeast Rehabilitation Hospital in Salem, NH, and Gaylord Hospital in Wallingford, CT.

NERSCIC conducts innovative research projects to improve health and long-term functioning of patients

with SCI through a site-specific project, Computer Adaptive Testing (CAT) for SCI, and a collaborative

module, Telehealth for Health. NERSCIC’s site-specific research project involves designing an improved

outcome instrument in SCI research using traditional outcome assessment technology that presents difficult

choices between comprehensive breadth and precision versus acceptable administration time and respondent burden. To solve this dilemma, this project applies contemporary measurement methods (CATS) to

initiate a major transformation in the outcome assessment technology used to assess activity limitation

frequently monitored in SCI research. Once the SCI-CAT has been developed using data collected from a

major field study, the project conducts a demonstration of the SCI-CAT to evaluate its respondent burden,

acceptability to patients and clinicians, as well as its breadth, precision, sensitivity to change, and validity

with inpatients and outpatients with SCI who are receiving care from NERSCIC. Comparisons are made

between the FIM and SCI-CAT over a six-month follow-up period. The goal of the collaborative research

project, Telehealth for Health, is the development and evaluation of an automated, telephone-based screening, referral, and behavioral intervention system with the long-term objective of promoting health and

function by preventing and decreasing the severity of important secondary conditions among individuals with

acute SCI, namely pressure ulcers, depression, and substance abuse.
NIDRR Program Directory FY 2006 - Health and Function 2-49

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Michigan

University of Michigan Model Spinal Cord Injury Care System

University of Michigan

Department of Physical Medicine and Rehabilitation

300 North Ingalls, Room NI2A09

Ann Arbor, MI 48109-0491

model.sci@umich.edu

www.med.umich.edu/pmr/modelsci/index.htm

Principal Investigator: Denise G. Tate, PhD

Public Contact: Martin Forchheimer, MPP, Project Manager 734/763-0971; Fax: 734/936-5492

Project Number: H133N060032

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $457,417

Abstract: The overall purpose of this project is to provide comprehensive rehabilitation and community

participation services and to generate new knowledge through research, development, and demonstration

designed to improve outcomes for persons with spinal cord injury (SCI). A site-specific research study is

conducted in partnership with faculty from the University of Michigan Depression Center, Department of

Psychiatry, and the Molecular and Behavioral Neurosciences Institute. This study is a randomized clinical

trial study designed to evaluate the efficacy of a pharmacological agent, Duloxetine (Cymbalta®), as a

preventive agent for reducing depression among persons with SCI. This clinical trial addresses a major need

in the field as there are no randomized clinical trials currently available on the effectiveness of antidepressants in persons with SCI. In this study, the drug’s effects on pain are also assessed. An outcome of this

study is the formulation of recommendations for antidepressant medication use in SCI and implications for

clinical practice guidelines. The project continues to operate an efficient data collection system, facilitating

research and contributions to the National SCI Database.
2-50 NIDRR Program Directory FY 2006 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Missouri

Missouri Model Spinal Cord Injury System

University of Missouri/Columbia

Department of Health Psychology

One Hospital Drive, DC046.46

Columbia, MO 65212

clarkmj@health.missouri.edu

www.hsc.missouri.edu/~momscis

Principal Investigator: Laura H. Schopp, PhD, ABPP 573/888-8847

Public Contact: Mary Clark, RN, MPH 573/882-5711 (V); 573/882-7971 (TTY); Fax: 573/884-2902

Project Number: H133N000012

Start Date: October 01, 2000

Length: 72 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $300,000; FY 01 $300,000; FY 02 $300,000; FY 03 $300,000; FY 04

$300,000; FY 05 $300,000; FY 06 $0 (No-cost extension through 9/30/2007)

Abstract: The Missouri Model Spinal Cord Injury System (MOMSCIS) is committed to developing,

implementing, and evaluating innovative research promoting independent living and community integration

among persons with spinal cord impairment. The study focuses on the effect of a consumer-directed personal assistance services training intervention on consumer satisfaction, independent living, and community

integration. The study develops, implements, and evaluates the in-person Individualized Management of

Personal Assistant/Consumer Teams (IMPACT) workshop. Workshop participants receive information on

preventing and treating secondary medical conditions, including pressure sores, urinary tract infections,

bowel and bladder management, autonomic dysreflexia, pain management, chronic fatigue, and thermoregulation, and information on relationship issues, such as hiring and firing, communication styles and strategies,

assertiveness, and team building. Study objectives are: (1) to determine the effect of the IMPACT workshop on consumer satisfaction, the incidence of secondary conditions, activity, and participation (as defined

by the ICF); (2) to determine the effect of the IMPACT workshop on personal assistants’ job satisfaction,

job stress and attrition; and (3) to provide online resources to the disability community, including an online

personal assistant training manual for consumers and assistants, and an online resources database. Activity

and participation are measured by the PARTicipation Survey for persons with Mobility Limitations (PARTS/

M).
NIDRR Program Directory FY 2006 - Health and Function 2-51

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

New Jersey

Northern New Jersey Spinal Cord Injury System

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052-1499

dtulsky@kmrrec.org

www.kmrrec.org/KM/nnjscis/

Principal Investigator: David S. Tulsky, PhD

Public Contact: 973/243-6849; 973/243-6916; Fax: 973/243-3527

Project Number: H133N060022

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $457,417

Abstract: The Northern New Jersey Spinal Cord Injury System (NNJSCIS) provides a comprehensive

continuum of state-of-the-art care for persons with spinal cord injury (SCI) and their significant others from

time of injury through long-term follow-up in the community and conducts spinal cord research, including

clinical research and the analysis of standardized data. NNJSCIS conducts both a site-specific research

study and a collaborative module. These studies contribute to evidence-based rehabilitation interventions

and clinical and practice guidelines that improve the lives of individuals with SCI and consist of the following:

An innovative rehabilitation intervention utilizing technology to prevent respiratory disease in persons with

SCI, now the leading cause of death and the third leading cause of hospitalizations in this population; a

collaborative module that adapts, develops, and validates an innovative and promising outcome system for

use in SCI intervention research; and the NNJSCIS coordinates with the NIDRR-funded Model Systems

Knowledge Translation Center to provide scientific results and information for dissemination to clinical and

consumer audiences. This project is a cooperative effort of the Kessler Medical Rehabilitation Research and

Education Corporation (KMRREC), the Kessler Institute for Rehabilitation (KIR), the University of Medicine and Dentistry of New Jersey - The New Jersey Medical School (UMDNJ-NJMS), and UMDNJUniversity Hospital.
2-52 NIDRR Program Directory FY 2006 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

New York

Mount Sinai Spinal Cord Injury Model System

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

One Gustave L. Levy Place; Box 1240

New York, NY 10029-6574

marcel.dijkers@mssm.edu

www.mssm.edu/rehab/spinal

Principal Investigator: Kristian T. Ragnarsson, MD

Public Contact: Marcel Dijkers, PhD 212/659-8587; Fax: 212/348-5901

Project Number: H133N060027

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $452,541

Abstract: The research program of Mount Sinai Spinal Cord Injury Model System (MS-SCI-MS) is

designed to advance the understanding of spinal cord injury (SCI) and its consequences, and to develop

better methods of treatment of secondary conditions of SCI, especially pain. The purpose of this project is

to: (1) demonstrate and evaluate a multidisciplinary system of rehabilitation care for persons with SCI in the

New York City metropolitan area, including innovative programs for community integration; (2) contribute

longitudinal data to the SCI National Database of the Model Systems program; (3) systematically collect

and analyze extensive information on chronic pain after SCI. The site-specific project studies modifiedrelease formulation of morphine sulfate for neuropathic pain after spinal cord injury through a randomized,

double-blind crossover trial of modified-release morphine and placebo for patients with uncontrolled

neuropathic pain of three types.
NIDRR Program Directory FY 2006 - Health and Function 2-53

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Ohio

Northeast Ohio Regional Spinal Cord Injury System

MetroHealth System

Department of Physical Medicine and Rehabilitation

2500 MetroHealth Drive

Cleveland, OH 44109

mroach@metrohealth.org

rehab.metrohealth.org

Principal Investigator: Gregory A. Nemunaitis, MD 216/778-5514

Public Contact: Mary Jo Roach 216/778-8781; Fax: 216/778-8782

Project Number: H133N060017

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $449,417

Abstract: The Northeast Ohio Regional Spinal Cord Injury System (NORSCIS) at MetroHealth Rehabilitation Institute of Ohio in collaboration with Case Western Reserve University and the Cleveland FES

Center conducts research to further develop the effectiveness of an innovative Model Spinal Cord Injury

Care System and to demonstrate how the application of advanced assistive technology can benefit persons

with disabilities. NORSCIS offers a world-class multi-disciplinary system of spinal cord injury care and a

40-year tradition of excellence. Efficiency and effectiveness of care (and research potential) are enhanced as

all components of the continuum of care (from trauma/emergency care to acute medical/surgical treatment to

inpatient rehabilitation to outpatient rehabilitation and community support services) are on one campus. A

site-specific project studies advances in functional electrical stimulation (FES) technology to document

improvements in function, health, and wellness. An innovative focus on trunk muscle stimulation targets

specific clinical problems, including seated stability and mobility, reachable workspace, and pulmonary

function. A collaborative research project with UPMC-SCI, is directed at testing and collecting the data

needed to understand the impact of coverage changes and to fully explore the issue of disparity in assistive

technology for mobility prescription. A collaborative project with Craig Hospital involves the development of

a reliable, valid measurement tool to assess community participation. The goal of these hypothesis-driven

research and demonstration projects is to develop and measure the effectiveness of new intervention

strategies at both the individual patient level and overall systems of care for persons with spinal cord injury.
2-54 NIDRR Program Directory FY 2006 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Pennsylvania

Demonstration of a Model Spinal Cord Injury System Center

Thomas Jefferson University

Regional Spinal Cord Injury Center of the Delaware Valley

132 South 10th Street

375 Main Building

Philadelphia, PA 19107-5244

mary.patrick@jefferson.edu

www.spinalcordcenter.org

Principal Investigator: John F. Ditunno, Jr., MD 215/955-5580

Public Contact: Mary Patrick 215/955-6579; Fax: 215/955-5152

Project Number: H133N000023

Start Date: September 01, 2000

Length: 72 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $370,000; FY 01 $370,000; FY 02 $370,000; FY 03 $370,000; FY 04

$370,000; FY 05 $370,000; FY 06 $0 (No-cost extension through 9/30/2006)

Abstract: The Regional Spinal Cord Injury Center of Delaware Valley (RSCICDV) is a comprehensive

program of coordinated patient care, education, and research activities. The RSCICDV: (1) conducts onsite research focusing on improved outcome measures to meet Federally established objectives; (2) refines

and improves the RSCICDV’s operational services and demonstration projects; and (3) conducts two

development projects including development of an SCI website and development of a Pressure Sore

Program. The on-site research includes four experiments: (1) validation of the Walking Index of Spinal Cord

Injury (WISCI) scale in a clinical setting for severity and hierarchical ranking; (2) validation of WISCI scale

for elements of a disability measure for distance, speed, and endurance into WISCI levels; (3) demonstration that the WISCI scale is responsive to change in a clinical trial setting; and (4) demonstration of consumer preference for walking. The four development projects include: (1) improved access to information

via the web site; (2) implementation of a critical pathway for more efficient heathcare delivery; (3) increased

employment and advancement of employment through hireAbility; and (4) increased monitoring of pressure

sores and strategies for prevention. This project contributes to the national statistics database at the University of Alabama at Birmingham.
NIDRR Program Directory FY 2006 - Health and Function 2-55

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Pennsylvania

Regional Spinal Cord Injury Center of the Delaware Valley

Thomas Jefferson University

Regional Spinal Cord Injury Center of the Delaware Valley

132 South 10th Street

375 Main Building

Philadelphia, PA 19107-5244

mary.patrick@jefferson.edu

www.spinalcordcenter.org

Principal Investigator: Ralph Marino, MD

Public Contact: Mary Patrick 215/955-6579; Fax: 215/955-5152

Project Number: H133N060011

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $464,417

Abstract: The Regional Spinal Cord Injury Center of the Delaware Valley (RSCICDV) provides and

evaluates a comprehensive program of coordinated patient care, education, and research activities for

individuals who have sustained a traumatic spinal cord injury (SCI). Clinical activities are directed at promoting evidence based practice to improve outcomes and reduce medical complications in persons with

SCI. Research activities are designed to develop and validate upper and lower extremity outcome measures

for use in clinical trials. Specifically, RSCICDV: (1) contributes to the National Database by enrolling an

estimated 50 new subjects per year into the database and by collecting follow-up data on previously

enrolled subjects; (2) conducts an on-site research project whose focus is to develop and validate the

Capabilities of Arm and Hand in Tetraplegia (CAHT), an objective test of arm and hand functional capabilities needed to conduct clinical trials for neurological recovery in SCI; (3) participates in a collaborative

module on evaluating an automated phone follow-up system for people with SCI; (4) participates in a

collaborative module on validation of an outcome measure for motor recovery in incomplete SCI; and (5)

develops educational resources for patients, healthcare providers and researchers.
2-56 NIDRR Program Directory FY 2006 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Pennsylvania

University of Pittsburgh Model Center on Spinal Cord Injury

University of Pittsburgh

2310 Jane Street Suite 1207

Pittsburgh, PA 15203

greekk@pitt.edu

www.upmc-sci.org

www.rehabmedicine.pitt.edu

Principal Investigator: Michael L. Boninger, MD 412/365-4861

Public Contact: Karen Greenwald 412/586-6941; Fax: 412/381-3956

Project Number: H133N060019

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $449,417

Abstract: The UPMC-SCI continues its research focus on assistive technology (AT) for mobility. Pilot data

collected during the previous funding cycle highlighted disparity in wheelchair prescription. Individuals from

minority groups and people with low socioeconomic status received less and lower quality equipment. So

that interventions can be developed, the project continues and expands this research to delve into the

reasons for disparity. In addition, it investigates the impact of recent Centers for Medicare and Medicaid

Services (CMS) changes for AT reimbursement. These changes will likely have a critical impact on the AT

provided to individuals with spinal cord injury (SCI). Finally, the project develops a tool to determine how

far, how fast, and when people travel in their wheelchairs. This data is related to the type of wheelchairs

used, to the number of wheelchair failures, and to measures of participation. From these findings, researchers determine how the wheelchair prescribed impacts participation, and if greater use leads to greater

failures. This data can be used to push for improvements in manufacturing and changes in coverage.

UPMC-SCI also conducts a randomized, controlled trial to determine if following the Consortium of Spinal

Cord Injury Medicine Guidelines on Upper Limb Preservation leads to decreased pain. These guidelines are

applied to acutely injured patients who are followed for the first six months after injury. Validation of the

guidelines’ effectiveness helps assure that they become the standard of care across the country. SCI care at

the University of Pittsburgh is provided in a multidisciplinary manner with a high level of communication

among the constituent services. The project has fully implemented a system of continuity of treatment that

begins with the emergency response at the scene of injury and continues with comprehensive treatment and

rehabilitation from medical/surgical to acute stage rehabilitation through utilization of assistive technology

services and vocational rehabilitation. The research and Model of Care set forth in this proposal will have a

significant impact on the lives of individuals with SCI, leading to greater participation and employment.

UPMC-SCI continues to enroll and collect long term follow up data on SCI subjects for the National Spinal

Cord Injury Statistical Center.
NIDRR Program Directory FY 2006 - Health and Function 2-57

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Texas

Texas Model Spinal Cord Injury System

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Street

Houston, TX 77030-3408

khart@bcm.tmc.edu

www.texasmscis.org

Principal Investigator: Daniel Graves, PhD; William Donovan, MD; 713/797-5023

Public Contact: Karen A. Hart, PhD 713/797-5946 (V); 713/797-5790 (TTY); Fax: 713/797-5982

Project Number: H133N060003

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $464,417

Abstract: The Texas Model Spinal Cord Injury System (TMSCIS) provides services along the entire

continuum of care from emergency medical service to long-term follow-up and management of secondary

conditions. The TMSCIS includes a site-specific research project that is designed to provide high level

evidence of the efficacy of a novel treatment to prevent bladder complications. The project is a randomized,

double blind placebo, controlled parallel groups investigation of the effects of Botulinum toxin A treatment of

detrusor external sphincter dyssynergia (DESD) during early spinal cord injury. Many patients with SCI

develop neurogenic bladder dysfunction associated with detrusor hyperreflexia and DESD that can lead to

long-term complications in up to 50% of patients. These complications include hydronephrosis,

vesicoureteral reflux, nephrolithiasis, sepsis, renal insufficiency or failure, and even death. This investigation is

intended to determine if the prevention of DESD in the early phase of recovery can prevent some of these

complications. In addition, the TMSCIS includes a module designed to develop an outcome measure of

trunk and postural control to be utilized in activity-based therapy programs like locomotor training. The

outcomes of large scale clinical trials of locomotor training highlight the need for outcome measures that are

designed to capture changes brought about by translational research that may not have been necessary for

more traditional therapy programs. This scale development project incorporates item response theory

methods as well as reliability and validity investigations in a minimum of four model systems.
2-58 NIDRR Program Directory FY 2006 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Virginia

VCU Model Spinal Cord Injury Center

Virginia Commonwealth University

School of Medicine

Department of Physical Medicine and Rehabilitation

Box 980661

Richmond, VA 23298-0661

wmckinle@hsc.vcu.edu

www.sci.pmr.vcu.edu/

Principal Investigator: William O. McKinley, MD; David X. Cifu, MD 804/828-0861

Public Contact: Michelle Meade, PhD 804/828-5401; Fax: 804/828-6340

Project Number: H133N000015

Start Date: October 01, 2000

Length: 72 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $310,000; FY 01 $310,000; FY 02 $310,000; FY 03 $310,000; FY 04

$310,000; FY 05 $310,000; FY 06 $0 (No-cost extension through 9/30/2007)

Abstract: This project develops and implements a Model Spinal Cord Injury System at Virginia Commonwealth University/Medical College of Virginia (VCU/MCV), that has a concentrated emphasis on employment. Researchers within this Model Systems systematically monitor and assess the impact of interventions,

advancing technology, and policy changes on employment following SCI. In addition to contributing to the

National Statistical Database at the University of Alabama at Birmingham, the VCU SCI Model System has

three research studies. These studies involve the direct utilization of the SCI National Database, a major

employment policy study across 18 states, and also an evaluation of technology training on employment of

outcome. Involvement of SCI mentors in training new vocational mentors with SCI is also an important

aspect of the project. By looking at the issues associated with employment for persons with SCI, this

project complements other resources in place within VCU/MCV, including the RRTC on Workplace

Supports, long-term relationships with the Virginia Department of Rehabilitation Services, and existing SCI

Model Systems delivery of care. A significant number of persons with disabilities are involved as project

staff as well as on an Advisory Board. A close relationship with the Mid-Atlantic Paralyzed Veterans Association (PVA) enhances training, dissemination, and other outreach activities.
NIDRR Program Directory FY 2006 - Health and Function 2-59

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Washington

Northwest Regional Spinal Cord Injury System

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98195-6490

scirehab@u.washington.edu

depts.washington.edu/rehab/sci

Principal Investigator: Charles H. Bombardier, PhD 206/731-3665

Public Contact: Cynthia Salzman, MHA 206/685-3999; Fax: 206/685-3244

Project Number: H133N060033

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $464,417

Abstract: The University of Washington’s Northwest Regional Spinal Cord Injury System (NWRSCIS)

serves a critical mass of patients with SCI and has all the necessary disciplines to provide state-of-the-art

medical, surgical, and rehabilitation care. One site-specific project is a randomized controlled intervention

study evaluating the effect of proactive, structured, telephone-based counseling and care management on

rehospitalization rate and quality of life during the first year after discharge from acute rehabilitation. This

study builds upon successful experiences with telephone counseling for both people with traumatic brain

injury and multiple sclerosis. This research is particularly important because the lifestyle changes and health

care behaviors required for successful living after SCI are tremendously challenging, rates of rehospitalization are high, and many people (especially in rural regions) lack ready access to knowledgeable advice,

behavior change support, and specialty care sufficient to maintain their health. A modular project studies the

natural history of major depression under conditions of usual care during the first year after SCI. This

project establishes reliable and valid means of screening and diagnosing major depression soon after SCI. It

examines the impact of depression on rehabilitation efficiency and compares the effect of standard treatment

to clinical practice guideline level care of depression. This study describes depression treatment preferences

among people with SCI and lays the foundation for a multi-site clinical trial. This project contributes to the

national statistics database at the University of Alabama at Birmingham.
2-60 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Alabama

Constraint-Induced Movement Therapy Modified for Rehabilitating Arm

Function in Stroke Survivors with Plegic Hands

University of Alabama

1530 Third Avenue, South, CPM 712

Birmingham, AL 35294-0018

kreative@uab.edu

Principal Investigator: Gitendra Uswatte, PhD 205/975-5089

Public Contact: Sonya Williamson 205/934-5601; Fax: 205/975-6140

Project Number: H133G050222

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 05 $149,891; FY 06 $149,954

Abstract: Based on positive findings from a pilot study, this project conducts a randomized, controlled

clinical trial to rigorously test the efficacy of a modification of Constraint-Induced Movement (CI) therapy

for rehabilitating arm function in chronic stroke patients with severe upper-extremity impairment. CI therapy

is a rehabilitation method that has been shown in controlled studies to produce large improvements in realworld upper-extremity use in individuals with chronic stroke. Up until now, survivors of stroke with plegic

hands have been excluded from CI therapy protocols, whether on a research or clinical basis. In the modified therapy, participants receive CI therapy, combined with other treatment modalities, for six hours per

day. The treatment package includes tone management/movement facilitation, training of more-impaired arm

use using shaping, functional task practice, restraint of the less-impaired arm in the laboratory and at home,

and a package of behavioral methods for transferring gains from the laboratory to the home situation.

Participants are also introduced to assistive and orthotic devices that might facilitate use of their moreimpaired arm in their daily life.
NIDRR Program Directory FY 2006 - Health and Function 2-61

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Improving Muscular Use and Cardio-Respiratory Demand in SpinalCord-Injured Patients Performing Functional Electronically Stimulated

Leg Cycle Ergonometry

University of California, Davis

Department of Mechanical and Aeronautical Engineering

2060 Bainer Hall

Davis, CA 95616

mlhull@ucdavis.edu

Principal Investigator: Maury Hull, PhD

Public Contact: 530/752-6220; Fax: 530/752-4158

Project Number: H133G020137

Start Date: January 01, 2003

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 02 $149,971; FY 03 $146,330; FY 04 $144,845; FY 05 $0 (No-cost extension

through 12/31/2006); FY 06 $0 (No-cost extension through 12/31/2007)

Abstract: This project develops new stimulation patterns for a functional electrically stimulated (FES) leg

cycle ergometer (LCE) that enable persons with spinal cord injuries to exercise with greater benefit. Greater

benefit is defined as exercising for a longer period of time and at a higher work rate while involving more leg

muscles than is possible with existing ergometers. To reach the general aim, the research is divided into three

phases, each directed towards testing a specific hypothesis: (1) normal recumbent pedaling can be simulated

using a computational musculoskeletal model of the leg; (2) minimizing muscle fatigue in a forward dynamic

simulation of recumbent pedaling yields computed stimulation patterns that enable an individual with SCI to

pedal the FES-LCE for longer periods of time, and at higher work rates, than is possible with current

stimulation patterns; and (3) using neural stimulation patterns computed from a forward dynamic simulation

of recumbent pedaling in which selected muscles of both the upper and lower leg are activated, an individual

can pedal the FES-LCE to obtain a greater cardio-respiratory workout than when only upper leg muscles

are stimulated.
2-62 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Development and Evaluation of a Quality of Life Instrument for

Individuals with Adult-Onset Hearing Loss

San Diego State University

School of Speech, Language, and Hearing Sciences

San Diego, CA 92182

carrenjstika@aol.com

chhs.sdsu.edu/slhs/stika/research1/

Principal Investigator: Carren J. Stika, PhD

Public Contact: 858/552-1996; Fax: 858/642-0266

Project Number: H133G030191

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $149,980; FY 04 $149,999; FY 05 $149,995; FY 06 $0 (No-cost extension

through 9/30/2007).

Abstract: This project develops a standardized, psychometrically rigorous quality of life instrument for

individuals with adult-onset hearing loss that is conceptually linked to the full range of functional domains

commonly impacted by hearing loss, and which quantifies respondents’ perceptions of domain satisfaction

and subjective well-being. Further, the quality of life instrument integrates the new paradigm of disability,

whereby environmental, cultural, and personal variables are considered in relation to the individual’s disability. The enhancement of quality of life has recently been recognized as the essential purpose of health care

and rehabilitation. Research is showing that it is the individual’s subjective well-being rather than the objective health condition or functional status that determines treatment-seeking behavior, compliance with

treatment, and treatment outcome. Individuals with hearing loss represent the single largest disability group in

the United States, with prevalence rates rising. Despite the fact that hearing loss often has a profound

influence on personal and social adjustment, employment status, and general well-being, few psychological

measures currently exist to help assess these effects or evaluate intervention outcomes.
NIDRR Program Directory FY 2006 - Health and Function 2-63

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

District of Columbia

Black-White Disparities in Stroke Rehabilitation

National Rehabilitation Hospital/Medstar Research Institute

Research Division

102 Irving Street, NW

Washington, DC 20010

Principal Investigator: Gerben DeJong, PhD 202/877-1960

Public Contact: Donal Lauderdale, MSE 202-877-1425

Project Number: H133G050153

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 05 $149,569; FY 06 $149,999

Abstract: This project analyzes a large existing dataset for disparities in stroke rehabilitation care and

outcomes among black and white stroke survivors and determines how rehabilitation treatments and outcomes can be optimized for both groups. Investigators then translate study findings into an actionable quality

improvement (QI) plan that rehabilitation centers can use to enhance care for both groups. Researchers use

data on 1063 individuals in the 2 racial groups originally acquired from 6 sites in the Post-Stroke Rehabilitation Outcomes Project (PSROP). This project used a practice-based evidence (PBE) method that examined the actual practice of care to identify the practices associated with best outcomes. PBE studies are

observational cohort studies that require researchers to specify carefully the nature of the rehabilitation

treatments and control exhaustively for the patient differences that may otherwise affect the outcomes. To

help generalize the findings of the study, investigators compare study participants with stroke survivors

included in eRehabdata, a national database to which 180 rehabilitation facilities report. The study is a

collaboration between the National Rehabilitation Hospital in Washington, DC and the Institute for Clinical

Outcomes Research in Salt Lake City, UT.
2-64 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

The Impact of Cognitive Impairment and Outcomes Following SCI

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road, NW

Atlanta, GA 30309

Principal Investigator: Stephen Macciocchi

Public Contact: 404/350-7553

Project Number: H133G030004

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 03 $149,642; FY 04 $149,920; FY 05 $149,999; FY 06 $0 (No-cost extension

through 12/31/2006)

Abstract: This project is designed to determine whether moderate to severe neurocognitive impairment

secondary to comorbid (brain injury) and/or premorbid cognitive disorders (learning disability/attention

deficit disorder) negatively impacts functional, health, quality of life, and participation outcomes following

SCI. Participants are followed (1) to determine the base rate of neurocognitive disorders in persons with

SCI and (2) to establish the relative effect premorbid/comorbid neurocognitive impairment has on functional

skills, health status, quality of life outcomes at discharge from inpatient rehabilitation, and participation

outcomes at one year following discharge.
NIDRR Program Directory FY 2006 - Health and Function 2-65

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Muscle Strength, Physical Work Capacity, and Functional Performance

in Individuals with Down Syndrome

University of Illinois/Champaign

College of Applied Life Sciences

108 Huff Hall, 1206 South Fourth Street

Champaign, IL 61820

fernhall@uiuc.edu

Principal Investigator: Bo Fernhall, PhD

Public Contact: 217/333-2131

Project Number: H133G040323

Start Date: October 01, 2004

Length: 24 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $149,984; FY 05 $149,591; FY 06 $0 (No-cost extension through 9/30/2007)

Abstract: This project evaluates the minimal muscle strength and endurance thresholds required for daily

functional performance, such as rising from a chair, ascending or descending stairs, the ability to walk fast

enough to cross a street in the time allotted at signaled intersections, and general walk/run performance. The

project also evaluates the effect of resistance training on the ability to perform these daily tasks and on

quality of life in individuals with Down Syndrome. This project is built on the premise that most individuals

with Down Syndrome have low levels of muscle strength which substantially contribute to functional limitations, poor work capacity, and reduced quality of life. Although many other factors contribute to functional

limitations and decreased quality of life in people with disabilities, muscle strength is a consistent major

contributor, and muscle strength can easily be addressed in intervention programs.
2-66 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Three Dimensional Assessment and Rehabilitation of Arm Function

Following Stroke

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1406

Chicago, IL 60611

r-beer@northwestern.edu

Principal Investigator: Randall F. Beer, PhD

Public Contact: 312/238-1412; Fax: 312/238-2208

Project Number: H133G030204

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $149,957; FY 04 $149,926; FY 05 $149,884; FY 06 $0 (No-cost extension

through 1/31/2007).

Abstract: The goal of this project is to develop and evaluate the Multi-Axis Cartesian-based Arm Rehabilitation Machine (MACARM) - a new device for the quantitative assessment and rehabilitation of three

dimensional arm movements following stroke. As a cost-effective alternative to robotic arm technology, the

MACARM utilizes a geometric arrangement of relatively simple, single degree of freedom “Active Modules” to achieve a large workspace and high force and positional performance. The MACARM is founded

on the Multipurpose Multiaxial Isokinetic Dynamometer (MMID) originally developed as an exercise

system for NASA. The objectives of this project are as follows: (1) to modify the MMID hardware to

achieve the force and positional accuracy required for upper limb rehabilitation, (2) to develop MACARM

software for upper limb assessment and rehabilitation, (3) to validate the static and dynamic force and

positional performance of the MACARM, and (4) to test the MACARM with human subjects, including

stroke survivors.
NIDRR Program Directory FY 2006 - Health and Function 2-67

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Gait Abnormalities in Individuals with Stroke: Implications to

Rehabilitation

Rehabilitation Institute Research Corporation

345 East Superior Street, Suite 1436

Chicago, IL 60611

y-dhaher@northwestern.edu

Principal Investigator: Yasin Y. Dhaher, PhD

Public Contact: 312/238-1408; Fax: 312/238-2208

Project Number: H133G040065

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $149,964; FY 05 $149,981; FY 06 $149,986

Abstract: This project assesses hip kinematics using standard motion analysis technology during

overground walking, and kinetics measured during constrained (i.e., sagittal plane restricted) simulated

treadmill walking using an instrumented robotic gait orthosis. These behaviors are compared to static

measures of both volitional and reflex (stretch) measurements at the hip, knee, and ankle joints of the

affected limb. Such measurements are performed in individuals with chronic stroke to identify factors that

contribute to abnormal frontal plane behaviors. In individuals with acute stroke, research characterizes the

mechanisms underlying development of abnormal frontal plane kinematics throughout the natural recovery

and rehabilitation processes. Finally, by providing specific gait retraining paradigms at the initial and chronic

stages of injury, the project determines the mutability of abnormal gait kinematics throughout the recovery

process.
2-68 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Enhanced Motor Recovery Using Serotonergic Agents

Rehabilitation Institute of Chicago

345 East Superior Street, Suite 1406

Chicago, IL 60611-4496

g-hornby@northwestern.edu

Principal Investigator: T. George Hornby, PhD PT

Public Contact: 312/238-1397

Project Number: H133G060124

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $142,710

Abstract: The purpose of this project is to identify changes in voluntary and reflex behaviors, with an

emphasis on walking ability, in individuals with stroke following specific pharmacological and physical

interventions, with the potential to optimize walking recovery during intensive rehabilitation. This project

focuses on improving independent walking ability in individuals with chronic hemiparesis post-stroke. A

substantial body of literature demonstrates the effectiveness of body-weight supported treadmill training

post-stroke, although the improvements in walking ability may be limited. The project’s goal is to enhance

the benefits of training by increasing neural excitability and potentially plasticity by application of serotonergic agents. The approach has two objectives: (1) demonstrate that serotonergic agents can modulate reflex

and voluntary motor activity with acute and chronic selective serotonin reuptake inhibitors administration,

and (2) accelerate motor performance and walking recovery using combined pharmacological and physical

interventions as opposed to either intervention alone.
NIDRR Program Directory FY 2006 - Health and Function 2-69

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Rehabilitation of Reaching in Chronic Stroke Using an Anti-Gravity

Force Field

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1406

Chicago, IL 60611

r-beer@northwestern.edu

Principal Investigator: Randall F. Beer, PhD 312/238-1556

Public Contact: Deborah Znajda 312/238-3381; Fax: 312/238-2208

Project Number: H133G060169

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 06 $149,926

Abstract: The major goal of this project is to develop, implement, and evaluate a novel robot-mediated

therapy to allow stroke survivors to perform reaching movements while gradually integrating the control of

posture and movement. The specific aims of this project are: (1) to characterize deficits in reaching as a

function of movement direction, external load, and limb orientation with respect to gravity; (2) to investigate

potential mechanisms underlying external load effects on reaching kinematics; and (3) to demonstrate the

efficacy of a robot-mediated “anti-gravity” force field to rehabilitate reaching in a group of chronic stroke

survivors with moderate or severe impairment. Thirty chronic stroke survivors, matched for initial impairment level, are assigned to either Force Field or Free Reaching protocols. The Force Field group trains

movements on the Multi-Axial Cartesian-based Arm Rehabilitation Machine (MACARM). The MACARM

is used to implement an elastic virtual table that provides subject-specific partial support of the limb against

gravity. The Free Reaching group practices unassisted reaching movements. Both groups train three times

weekly for eight weeks, with the goal of increasing reaching extent. Therapeutic efficacy is determined

based on pre/post comparisons of the outcome measures provided by Aim 1 and clinical measures of motor

function, functional independence, and quality of life. Researchers also evaluate the transfer of training

effects to untrained movement directions, load conditions, or limb orientations.
2-70 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

A Randomized Trial of Realignment Therapy for Treatment of Medial

Knee Osteoarthritis

Boston University

Clinical Epidemiology and Research Training Unit

715 Albany Street, Room A203

Boston, MA 02118

djhunter@bu.edu

Principal Investigator: David J. Hunter, MD, PhD

Public Contact: 617/638-5180; Fax: 617/638-5239

Project Number: H133G040201

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000

Abstract: The overall objective of this project is to determine whether the provision of realignment therapy

in patients with medial knee osteoarthritis (OA) relieves knee pain and improves function. The project tests

the hypothesis that compared to control treatment, the use of realignment therapy (valgus knee brace +

motion control shoes + orthosis) is effective in medial knee OA. The specific aims are: (1) To undertake a

24 week randomized crossover clinical trial in patients with medial knee osteoarthritis to determine whether

provision of realignment therapy leads to lower pain scores and improved function during the time of this

treatment than during the use of a placebo treatment; (2) to perform an open label follow-up study to track

use and effectiveness of treatment. This project is co-funded by DonJoy, a knee bracing company.
NIDRR Program Directory FY 2006 - Health and Function 2-71

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Psychological and Physiological Aspects of Menopause in Women with

Spinal Cord Injury

University of Michigan

Department of Physical Medicine and Rehabilitation

300 North Ingalls, Room NI2A09

Ann Arbor, MI 48109-0491

Principal Investigator: Claire Kalpakjian, PhD

Public Contact: 734/763-0971; Fax: 734/936-5492

Project Number: H133G040274

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $149,924; FY 05 $149,432; FY 06 $149,855

Abstract: The overall goal of this project is to test the general hypothesis that SCI will moderate the

relationship of menopause and health-related outcomes. This research involves two interrelated studies of

women with SCI: Study 1 is aimed at examining physical (e.g., secondary conditions), and psychological

outcomes (e.g., depression, perceived stress), while Study 2 is aimed at examining physiological outcomes

(e.g., body composition, fitness levels). These studies involve a total of 227 women with SCI, men with

SCI, and women without disabilities. Study 1 involves three collaborating centers (University of Michigan,

Craig Hospital, and Santa Clara Valley Medical Center) in the collection of longitudinal survey data from

207 participants to assess the ability to reliably distinguish secondary conditions of SCI from menopause

symptomatology and experience of menopause symptomatology in women with SCI (women without

disabilities serve as controls). Men with SCI serve as controls in the first part of this study. Study 2 (University of Michigan only) collects longitudinal data to investigate physiological outcomes menopause in a total of

20 women.
2-72 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Sensorimotor Training and Assessment in Adults with Hemiplegic

Cerebral Palsy: The ULTrA Program

University of Michigan

Division of Kinesiology

401 Washtenaw

Ann Arbor, MI 48109-2214

shcb@umich.edu

www.motorcontrol.umich.edu/ultra

Principal Investigator: Susan H. Brown, PhD

Public Contact: 734/763-6755; Fax: 734/936-1925

Project Number: H133G050151

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 05 $148,810; FY 06 $148,221

Abstract: This project implements a ten-week upper limb training and assessment program (ULTrA.

Program) for adults with hemiplegic cerebral palsy (CP), a growing yet neglected segment of the CP community. This program is home-based but linked to the research laboratory through the Internet. Prior to and

following clinical intervention, a quantitative assessment of upper limb and hand sensorimotor function is

made using established motor control techniques. Each participant receives a computer-based upper limb

training unit, including high speed Internet connectivity and a training CD. A 40-minute, tailored intervention

program is performed six days a week. During three of these training sessions, a student coach assists

participants via webcam. During the coaching sessions, movement time and grasp force data are recorded

and uploaded to a central website which also serves as a resource for consumers and researchers in the

area of mobility in CP across the lifespan. Training in this intervention leads to improved sensorimotor

function of the affected limb and improved bilateral coordination in adults with hemiplegic CP. This internetbased program, which utilizes virtual coaches, facilitates adherence to the training program and thus maximizes the benefit of the intervention.
NIDRR Program Directory FY 2006 - Health and Function 2-73

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Nebraska

Investigation of the Dynamics of Development of Sitting Postural Control

in Infants with Cerebral Palsy

University of Nebraska at Omaha

HPER Biomechanics Lab

6001 Dodge Street

Omaha, NE 68182-0216

nstergiou@mail.unomaha.edu

www.unocoe.unomaha.edu/hper/bio/home.htm

Principal Investigator: Nicholas Stergiou, PhD; Wayne A. Stuberg, PhD, PT; Regina T. Harbourne, PT

402/554-3247

Public Contact: Lisa Holst 402/554-3075; Fax: 402/554-3693

Project Number: H133G040118

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000

Abstract: The overall goal of this research is to understand the mechanisms underlying the development of

postural control in sitting using new methodology, in order to provide a scientific basis for evaluation and

treatment of posture and movement disorders in infants with cerebral palsy. The development of early

posture control remains poorly understood despite considerable therapeutic effort. Infants with cerebral

palsy show their first delays in the acquisition of sitting, with subsequent problems developing adequate

posture and movement control. Identifying the delay, determining the nature of the problem, and evaluating

the effectiveness of treatment quickly, are vital in the early part of an infant’s life, since this is the time of

greatest plasticity. Tools from nonlinear dynamics, which are increasingly being used to examine other

biological rhythms, are used in this study to analyze postural sway from center of pressure data during the

development of sitting postural control.
2-74 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Jersey

Practical Clinical Trial of Cognitive Rehabilitation in Neurologic Illness

JFK Johnson Rehabilitation Institute

2048 Oak Tree Road

Edison, NJ 08820

kcicerone@solarishs.org

www.njrehab.org/tbims

Principal Investigator: Keith D. Cicerone, PhD

Public Contact: 732/906-2640; Fax: 732/906-9241

Project Number: H133G050063

Start Date: November 01, 2005

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $150,000; FY 06 $150,000

Abstract: This project conducts a prospective, randomized, practical clinical trial of intensive cognitive

rehabilitation for persons with (non-traumatic) neurologic illness. Neurologic illness is a common condition

that impacts personal autonomy, social relatedness, and quality of life. Impairments of cognitive functioning

are common after neurologic illness, and are associated with persistent disability. The project evaluates the

effectiveness of a program of Intensive Cognitive Rehabilitation (ICRP) compared with a standard rehabilitation program (SRO) for persons with neurologic illness. Participants enrolled from clinical and communitybased referrals are randomly assigned to receive a 17-week program of either ICRP or SRO. A broad

range of health-related outcome measures are used, including neuropsychological functioning, community

integration and social participation, perceived quality of life, and patient-centered view of change.
NIDRR Program Directory FY 2006 - Health and Function 2-75

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Impact of Cooling and Exercise on Fatigue in Individuals with Multiple

Sclerosis

State University of New York (SUNY) at Buffalo

Department of Rehabilitation Science

515 Kimball Tower

Buffalo, NY 14214

nfisher@buffalo.edu

sphhp.buffalo.edu/rs/rehabphys

Principal Investigator: Nadine M. Fisher, EdD

Public Contact: 716/829-3141, ext. 145; Fax: 716/829-3217

Project Number: H133G050198

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $149,999; FY 06 $150,000

Abstract: Multiple Sclerosis (MS) is an inflammatory, demyelinating disease of the central nervous system.

The most common symptom of MS is a generalized sense of fatigue. Some distinguishing features of fatigue

in MS are that it comes on easily, prevents sustained physical functioning, interferes with an individual’s

responsibilities and role performance, and is worsened by heat. To manage fatigue, it has been suggested

that individuals with MS should participate in aerobic exercise, plan for rest periods, improve sleep, and

avoid heat. The goals of this research study are (1) to assess how work capacity (exercise) and fatigue are

affected by different cooling strategies (Phase I), and (2) to determine the effects of a 12-week aerobic

exercise program on heat flux and changes in skin and core body temperature (Phase II). In Phase I, 60

subjects with mild to moderate MS-related disability are assessed for physiological changes during four

cooling conditions (no cooling, pre-cooling, cooling during exercise, ad libitum cooling). After completion of

Phase I, the subjects are randomly assigned to exercise without cooling, exercise with cooling, or control

groups for Phase II (a 12-week aerobic cycling exercise program). For Phase II, a baseline maximal graded

exercise test to assess cardiovascular function and measures of fatigue and temperature are conducted prior

to randomizing the subjects into the three groups. Positive results of the study will lead to a better understanding of treatment (cooling) possibilities and exercise rehabilitation procedures available for individuals

with MS.
2-76 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Naturalistic Action Impairment in Left Hemisphere Stroke: Cognitive

Predictors and Consequences

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

Korman 213, 1200 West Tabor Road

Philadelphia, PA 19141

lbuxbaum@einstein.edu

Principal Investigator: Laurel Buxbaum, PsyD

Public Contact: 215/456-5953; Fax: 215/456-5926

Project Number: H133G030169

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $149,936; FY 04 $149,319; FY 05 $149,966; FY 06 $0 (No-cost extension

through 9/30/2007)

Abstract: This project: (1) provides a detailed analysis of the cognitive and neuroanatomical predictors of

naturalistic action (NA) performance in well-characterized individuals who have suffered left hemisphere

stroke; (2) clarifies the relationships between left hemisphere apraxia and the performance of NA; (3)

identifies the left hemisphere neuroanatomic structures associated with NA impairment; (4) improves the

construct validity of the Naturalistic Action Test, a published measure of NA developed by the investigators,

by establishing its relationship to tests of apraxia, and extending what is known of its relationships to measures of attention and executive function; and (5) educates rehabilitation professionals and caregivers about

results these research goals. Acquired impairment in activities of daily living and instrumental activities of

daily living such as meal preparation, dressing, and shopping is a common and persistent consequence of

stroke, affecting approximately 50 percent of the nearly four million Americans living with the effects of

stroke. Impairment in these NA activities has important consequences for caregiver burden and independence, and predicts future risk of failure to return to work, nursing home admission, and death.
NIDRR Program Directory FY 2006 - Health and Function 2-77

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Use of Functional Neuroimaging to Assess the Status of the Attention

Networks Following Traumatic Brain Injury

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

1200 West Tabor Road, Korman Suite 213

Philadelphia, PA 19141-3098

Principal Investigator: John Whyte, MD, PhD

Public Contact: 215/456-5924; Fax: 215/456-5926

Project Number: H133G050219

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $149,975; FY 06 $149,996

Abstract: Traumatic brain injury (TBI) is a common cause of disability, particularly in young adults. Survivors of TBI frequently suffer from persistent cognitive impairments that interfere with the rehabilitation

process, as well as return to school, work, and community life. Difficulties with attention, including distractibility, difficulty concentrating, difficulty dividing attention (multi-tasking), and cognitive fatigue during effortful

tasks, are among the most frequent complaints of survivors of TBI and their caregivers. This project studies

the behavioral response and neural network activation patterns associated with performance of three tasks

designed to rely heavily on the three distinct attention networks: vigilance, executive, and orienting. The

study compares uninjured control participants to survivors of severe TBI, with respect to both behavior and

brain activation studied with perfusion, and fast event-related BOLD functional magnetic resonance imaging.

The study also compares the performance of TBI survivors on active drug and placebo in two separate

pharmacologic probe studies, using single doses of bromocriptine (a D2 dopaminergic agonist) and nicotine

(a nicotinic cholinergic agonist), predicting different patterns of responses to the two agents.
2-78 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Understanding the Determinants of Motor Ability, Self-Care, and Play of

Young Children with Cerebral Palsy

Drexel University

Physical Therapy and Rehabilitation Sciences

245 North 15th Street, Mail Stop 502

Philadelphia, PA 19102

lisa.chiarello@drexel.edu

Principal Investigator: Lisa A. Chiarello, PT, PhD

Public Contact: 215/762-8805; Fax: 215/762-3886

Project Number: H133G060254

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $149,981

Abstract: The specific purpose of this project is to validate a multivariate model of determinants of change

in basic motor ability and engagement in self-care and play of young children with cerebral palsy. The

objective is to identify the child characteristics, family ecology, and rehabilitation and community services

that optimize outcomes. The project targets a subset of children with cerebral palsy who as adults will not

walk independently in the community and will require physical assistance for self-care at times throughout

the day. Information on the factors that enhance outcomes for these children is particularly needed because

families expend considerable time and resources to meet their children’s health, education, and development

needs. Knowledge of determinants of children’s change in basic motor abilities and engagement in self-care

and play will enable health care professionals and educators to provide evidence-based interventions,

support families, and optimize community resources.
NIDRR Program Directory FY 2006 - Health and Function 2-79

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Virtual Reality Assessment and Treatment of Hemispatial Neglect

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

Korman 213, 1200 West Tabor Road

Philadelphia, PA 19141

lbuxbaum@einstein.edu

Principal Investigator: Laurel Buxbaum, PsyD

Public Contact: 215/456-5953; Fax: 215/456-5926

Project Number: H133G060086

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $149,593

Abstract: The goal of this project is to address previous limitations in the assessment and treatment of

neglect through the use of virtual reality (VR) technology. Hemispatial neglect, a failure to attend to and/or

act on objects on the side of space opposite a brain lesion, is a common and persistent consequence of

stroke, occurring in approximately 45% of the nearly 2 million Americans who have suffered a right hemisphere cerebral vascular accident. The neglect syndrome is associated with impairments in a wide range of

activities of daily living, with significant consequences for functional independence. This project capitalizes

on a number of VR’s useful assets, including simulation of the spatial and cognitive demands of real world

environments, quantification of aspects of performance, ready control of the experimental task, and ease of

administration. The major aims are: (1) to develop and validate a VR navigation task measuring lateralized

attention (the VRLAT), an extension of a sensitive VR task developed previously; (2) to perform clinical

trials assessing the short-term efficacy of two VR-based treatments for neglect that induce different types of

mismatch between proprioceptive and visual information, using the VRLAT as one of the measures of

treatment response; and (3) to perform clinical trails of the two treatments focused on generalization and

maintenance of gains with a longer course of treatment.
2-80 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

A Study of Biophysical and Microvascular Function of Individuals with

SCI: Implications for Alternating Pressure Support Surfaces

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

2310 Jane Street, Suite 1300

Pittsburgh, PA 15203

dbrienza@pitt.edu

Principal Investigator: David M. Brienza, PhD 412/586-6907

Public Contact: Debby Keelan 412/586-6905; Fax: 412/586-6910

Project Number: H133G040222

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $149,246; FY 05 $149,115; FY 06 $149,187

Abstract: The specific aims of this research study are to: (1) characterize blood flow control mechanisms

(e.g. metabolic, neurogenic, and myogenic controls) via laser Doppler blood flow using Wavelet analysis in

individuals with SCI; (2) investigate the use of alternating pressure for enhancing skin blood flow in SCI; (3)

compare the effect of neurogenic control of cutaneous microcirculation on the strength of blood flow responses to alternating pressure in SCI with T-6 above and below; and (4) compare the effect of soft tissue

properties on the strength of blood flow responses to alternating pressure in SCI with T-6 below and

unimpaired subjects. These studies provide insight into mechanisms important to the configurations of

optimal parameters for enhancing blood flow in SCI population, and provide a valid method for the evaluation of alternating pressure devices.
NIDRR Program Directory FY 2006 - Health and Function 2-81

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

Risk for Early Mortality After Spinal Cord Injury

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

Research Office

77 President Street, Suite 117

PO Box 250822

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-5649

Project Number: H133G030117

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 03 $149,984; FY 04 $149,996; FY 05 $149,964; FY 06 $0 (No-cost extension

through 9/30/2007)

Abstract: This project identifies the relationships of life adjustment, quality of-life, activities, fitness, and

secondary conditions with length of survival and causes of death after SCI. Two studies utilize distinct

prospective data sets. The data for study 1 was collected from 362 participants in 1990/1991, whereas the

data for study 2 was collected from 597 participants in 1995/1996. Similar, but not identical, measures

were obtained from each of the two study samples. Current mortality status is identified using the National

Death Index and the Master Beneficiary Record and Summary Earnings files from the Social Security

Administration. The most basic biographic and injury related variables are entered as a block first as statistical controls. The general life adjustment and health variables and the more specific secondary conditions

variables, none of which have been the focus of previous studies, are investigated in more detail in relation to

mortality, as they hold the greatest promise for intervention.
2-82 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

A Longitudinal Study of Risk for Hospitalization, Pressure Ulcers, and

Subsequent Injuries After Spinal Cord Injury

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

Research Office

77 President Street, Suite 117

PO Box 250822

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-5649

Project Number: H133G050165

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 05 $149,992; FY 06 $149,995

Abstract: The onset of spinal cord injury (SCI) increases the risk for the development of a number of

secondary conditions that may adversely impact an individual’s life and even result in early mortality. The

purpose of this project is to perform a longitudinal study to identify protective and risk factors associated

with the onset of multiple types of adverse health events among a large sample of individuals with SCI. In

1997-8, prospective data was collected on 1,391 participants who included a substantial number of women

(n = 362) and racial/ethnic minorities (n = 359). Risk and protective predictors were selected based on a

general empirical risk model. Predictor variables were first measured over a 10-month period in 1997-

1998, including: (a) biographical status, (b) injury status, (c) psychological status, (d) environmental factors,

and (e) health behaviors. Several health outcomes measures were also used. During this follow-up study, the

project administers several new predictor measures along with multiple outcome measures, several of which

were also administered during the previous study. These measures focus on adverse health events including

hospitalizations, onset of pressure ulcers, subsequent injuries, and the onset of probable major depression.

The project includes structural equation modeling to develop risk models for each outcome. A consumer

advisory committee meets bi-annually to make recommendations regarding all components of the project.

The ultimate study goal is to enhance the lives of people with SCI by identifying the risk and protective

factors associated with adverse health events to serve as a foundation for prevention efforts by rehabilitation

and public health professionals. This directly empowers consumers to improve their own health by being

provided with concrete information and recommendations to promote better health and avoid preventable

secondary health complications.
NIDRR Program Directory FY 2006 - Health and Function 2-83

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

Participation, Subjective Well-Being, Health, and Spinal Cord Injury: A

35-Year Longitudinal Study

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

Research Office

77 President Street, Suite 117; PO Box 250700

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-5649

Project Number: H133G060126

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $149,954

Abstract: The purpose of this 35-year longitudinal study is to identify the natural course of changes in

participation, health, and subjective well-being among five cohorts of participants with spinal cord injury

(SCI). Data were first collected in 1973 from 256 participants, 78 of whom have participated throughout

the study. Using a revolving panel longitudinal design, participants are followed over time with new participant samples added to counter attrition. To date, there have been a total of 2,208 different participants over

the 6 times of measurement, including nearly 100 who have lived 40 or more years with SCI. This study is

the seventh stage of data collection and addresses not only the natural course through analysis of both

cross-sectional and multiple longitudinal elements, but also special issues including quality of life and termination of employment, change in living circumstance to a more restrictive environment, and the role of environmental factors on stability of health and quality of life. There are three primary activities: (1) finalization of

instrumentation, based on consumer panel recommendations and pilot testing; (2) primary data collection;

and (3) consumer initiated development of recommendations for healthy living with aging for consumers and

policy recommendations for rehabilitation professions and legislators.
2-84 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Tennessee

The Relationship Of Minimal Sensorineural Hearing Loss (MSHL) to

Psycho-educational Development

Vanderbilt University Medical Center

1215 21st Avenue South

Medical Center East, South Tower, Suite 6308

Nashville, TN 37232

fred.h.bess@vanderbilt.edu

www.vbwc.com

Principal Investigator: Fred H. Bess, PhD

Public Contact: 615/936-5001; Fax: 615/936-5014

Project Number: H133G050211

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 05 $150,000; FY 06 $150,000

Abstract: The objectives of this study are to identify young school-aged children with minimal sensorineural

hearing loss (MSHL) and to assess the relationship of MSHL to psycho-educational development. MSHL is

defined for three distinct populations of children: (1) children with unilateral sensorineural hearing loss, (2)

children with bilateral minimal sensorineural hearing loss with thresholds averaging 20-40 dB, and (3)

children with high frequency sensorineural hearing loss above 2000. The project identifies young children

with MSHL and their counterparts with normal-hearing matched for age, sex, gender, and SES controls in

kindergarten, first, and second grade. The educational and functional status of these two groups is then

compared. During a two-year period, approximately 300 children undergo a series of evaluations at least

one year apart. The results from this project disclose new information concerning the psycho-educational

problems experienced by young children with MSHL. In addition, the longitudinal data from this project

provides new knowledge about the developmental trajectory of children with MSHL. Moreover, the data

provided by this research allows for the development of a profile specifying the characteristics of young

children with MSHL who are at significant risk of developing later academic and functional deficits. Finally,

findings from this study facilitate the development of effective identification and intervention strategies for this

population of children.
NIDRR Program Directory FY 2006 - Health and Function 2-85

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Cost Effectiveness of Rehabilitation Following Traumatic Brain Injury

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

1333 Moursund Avenue

Houston, TX 77030-3498

whigh@bcm.tmc.edu

www.braininjuryresearch.org

Principal Investigator: Walter M. High Jr., PhD

Public Contact: 713/383-5643; Fax: 713/668-5210

Project Number: H133G030144

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06 $0 (No-cost extension

through 9/30/2007)

Abstract: This project researches the effectiveness of rehabilitation on two new cohorts of persons with

TBI who have either received or not received comprehensive inpatient rehabilitation. At one year post

injury, costs for services the persons with TBI are likely to receive and vocational losses are calculated and

adjusted for demographic, socioeconomic, and neurological variables. The differences between the costs

and vocational losses between the two groups are then compared to the actual reimbursements for comprehensive inpatient rehabilitation services.
2-86 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Washington

Efficacy of Pressure Garment Therapy After Burns

University of Washington

Harborview Medical Center, Box 359796

325 Ninth Avenue

Seattle, WA 98104

engrav@u.washington.edu

Principal Investigator: Loren H. Engrav, MD

Public Contact: 206/731-3209

Project Number: H133G050022

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 05 $150,000; FY 06 $150,000

Abstract: This project conducts a randomized, controlled trial to determine the efficacy of custom-fit

pressure garment therapy in the prevention of hypertrophic scarring in healed burns so that the garments

may be prescribed based upon sound data or discontinue their use in bum care. Hypertrophic scarring is

one of the most devastating outcomes following burn injury. Pressure garments are the common therapy to

minimize these effects. However, these garments are unattractive, expensive, and uncomfortable, and their

use needs to be validated by rigorous research. The objective of this project is to determine the efficacy of

this therapy in the prevention of hypertrophic scarring in healed burns so that prescription of them may be

based upon sound data or discontinue their use.
NIDRR Program Directory FY 2006 - Health and Function 2-87

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Fracture Risk Prediction in Children and Adults with Osteogenesis

Imperfecta (OI)

Marquette University

Orthopaedic and Rehabilitation Engineering Center

P.O. Box 1881

Milwaukee, WI 53201-1881

gerald.harris@marquette.edu

www.orec.org; www.marquette.edu

Principal Investigator: Gerald F. Harris, PhD, PE 414/288-0698

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133G050201

Start Date: November 01, 2005

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 05 $150,000; FY 06 $150,000

Abstract: This project develops an accurate biomechanical model of the lower extremities to better understand, predict, and ultimately rehabilitate and better control fracture occurrence in children and adults with

Osteogenesis Imperfecta (OI). State-of-the-art technologies including nanoindentation, 3-D gait analysis,

and finite element analysis are employed in the development process, in addition to an array of clinical

assessment tools. A primary design goal includes model flexibility for more universal yet specific application

in children and young adults with OI. This work uses the novel technology of nanoindentation to better

characterize the structural properties of OI bone in children and young adults. For this parallel portion of the

work, bone samples are gathered during routine reparative surgery from thirty-four individuals (children and

young adults) with OI who have experienced fractures. The bone is then analyzed to determine strength,

stiffness, modulus, and brittleness/ductility at the trabecular level. Results are compared to current published

studies and used to significantly enhance the existing data. This project constructs a finite element model of

the lower extremities. In addition to published material property data, input for the model comes from 3-D

quantitative gait studies (for constraints and boundary conditions) and the parallel nanoindentation studies

(for material property data). The resulting model accurately reflects the structural anatomy, mechanical

properties, and loads on the long bones of the lower extremities. The model is flexible and specifically fit to

the study participants’ bony geometry on the basis of radiographs. During the course of the study, the model

boundary conditions will be altered to explore the influence of factors such as bone size, geometry (bowing),

bone structure, and functional loading on the development of fractures. A comparison of model parameters

to clinical assessment results provides critical insight with regard to fracture development, therapeutic

intervention, and longer-term outcomes.
2-88 NIDRR Program Directory FY 2006 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Adverse Outcomes Following Inpatient Rehabilitation: Trends and

Reasons

University of Wisconsin/Milwaukee

Department of Occupational Therapy

Enderis Hall 963; PO Box 413

Milwaukee, WI 53201

johnsto@uwm.edu

Principal Investigator: Mark Johnston, PhD

Public Contact: 414/229-3616

Project Number: H133G060218

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 06 $149,129

Abstract: Research is needed to develop the knowledgebase and tools necessary to address the problem

of increased rates of mortality and hospitalization following inpatient rehabilitation and to examine explanations for adverse outcomes. Descriptive analyses are conducted first to describe important trends in mortality and rehospitalization and to provide a basis for further analyses. Multivariate risk adjustment models –

based on impairments, functional level, age, and other patient characteristics in extant databases – are then

developed to predict adverse outcomes. These risk adjustment models provide the necessary basis to

distinguish the effects of patient severity and caseload from other factors that affect adverse outcomes.

Researchers then examine and test the effects of important facility characteristics that may affect rates of

adverse outcomes. The primary outcomes to be studied are mortality and rehospitalization; functional

decline is also studied, as it, too, may indicate medical instability, and all three outcomes may - or may not -

be predicted and affected by the same set of factors.
NIDRR Program Directory FY 2006 - Health and Function 2-89

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Conservative and Surgical Clubfoot Treatment: Multi-Center Study

Marquette University

Orthopaedic and Rehabilitation Engineering Center

P.O. Box 1881

Milwaukee, WI 53201-1881

depps@mcw.edu

www.orec.org; www.marquette.edu

Principal Investigator: Peter A. Smith, MD

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133G060252

Start Date: January 01, 2007

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $150,000

Abstract: This study is designed to compare the longer-term effects of two methods of clubfoot treatment:

(1) the conservative Ponseti technique of manipulation and casting and (2) progressive surgical release.

Clubfoot is a congenital foot deformity occurring in 1 in 1,000 births. It is commonly treated at pediatric

orthopaedic hospitals and its incidence has been constant and not expected to decrease. Treatment is ideally

accomplished early in life, within the first year, and is often successful in accomplishing a satisfactory, plantigrade foot, which will fit in shoes. Little is known, however about the function of treated clubfeet. This

project investigates the longer-term outcome of children with treated clubfoot deformity using patient-based

outcomes, functional instruments, motion analysis, radiological assessment, and postural stability. The

objective is to determine whether functional outcomes, postural stability, and gait analysis characterize

overall patient satisfaction and motor performance and to quantify the effects of orthopaedic interventions.
2-90 NIDRR Program Directory FY 2006 - Health and Function

Small Business Innovative Research (SBIR), Phase II 16 Small Business Innovative Research (SBIR), Phase II

Delaware

A Low Cost, High Resolution Pressure Mapping System for the

Prevention of Pressure Ulcers

EM Photonics Incorporated

102 East Main Street, Suite 204

Newark, DE 19711

behrmann@emphotonics.com

Principal Investigator: Gregory P. Behrmann

Public Contact: 302/456-9003; Fax: 302/456-9004

Project Number: H133S040134

Start Date: October 01, 2004

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 04 $249,928; FY 05 $249,197; FY 06 $0 (No-cost extension through 9/30/2007)

Abstract: Pressure ulcers are a serious medical problem with annual treatment costs over $1 billion. While

the exact etiology involves a complex combination of factors, it is generally accepted that prolonged pressure to soft tissues results in discrete areas of acute ischemia. If the pressure is not relieved and the blood

supply restored in a critical length of time, endothelial cell damage will result and eventually necrosis will

occur. While it is a common and serious condition for individuals who are confined to beds or wheelchairs

the occurrence of pressure sores can be drastically reduced by frequent changes in one’s body position. As

a result, a number of companies have developed pressure-mapping systems to provide caregivers, patients

and researchers important feedback regarding physical position history. This project builds upon previous

research to develop a novel optically based pressure mapping system and compare its performance to

existing systems in clinical settings. The design, based on mature optical technology, has the physical characteristics of a thin sheet of flexible plastic. Given its sensitivity to pressure, this technology can be adapted for

medical device applications. If successful, these disposable sensor sheets can be inexpensively applied to

large areas, unobtrusively conform to any surface with minimal alteration of the tissue interface, and provide

high resolution pressure maps.
Technology for Access and Function

With NIDRR's research priorities, technology spans the goals of sustaining health and

function, employment, and participation and community living reflecting the critical

contributions of technology to successful outcomes for persons with disabilities in all

these areas. At the individual level, the primary focus is on assistive technology devices

that enhance the physical, sensory, and cognitive abilities of people with disabilities and

assist them in participating and functioning more independently in the home, at work, in

recreational settings, and at cultural and community events. At the systems level, the

emphasis is on applying technology research and development in ways that enhance

community integration, independence, productivity, competitiveness, and equal

opportunity by mitigating or eliminating barriers found in large social systems such as

public transportation, telecommunications, IT, and the built environment.

Contents

Rehabilitation Engineering Research Centers (RERCs) ................................................. 3

Disability and Rehabilitation Research Projects ........................................................... 27

Field Initiated Projects (FIPs) ...................................................................................... 38

Small Business Innovative Research (SBIR), Phase I ................................................. 72

Small Business Innovative Research (SBIR), Phase II ................................................ 85

NIDRR Program Directory FY 2006 - Technology for Access and Function 3-3

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

California

RERC on Spinal Cord Injury: Keep Moving: Technologies to Enhance

Mobility and Function for Individuals with Spinal Cord Injury

Los Amigos Research and Education Institute, Inc. (LAREI)

P.O. Box 3500

Downey, CA 90242

prequejo@larei.org; rwaters@larei.org

www.larei.org

Principal Investigator: Philip Requejo, PhD; Robert Waters, MD; 562/401-7994; 562/401-7161

Public Contact: Julia LaPlount 562/401-8111; Fax: 562/803-5569

Project Number: H133E020732

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $899,974; FY 03 $899,932; FY 04 $899,882; FY 05 $899,961; FY 06

$899,951

Abstract: This RERC improves the lives of individuals with SCI by promoting their health, safety, independence, and active engagement in daily activities. Activities include: (1) monitoring trends and evolving

product concepts that represent future directions for technologies in SCI, (2) conducting research to advance the state of knowledge, (3) disseminating the information to the population, (4) developing and testing

prototype devices that are useful and effective and transferring them to the marketplace, (5) advancing

employment opportunities for individuals with SCI, and (6) developing ways to expand research capacity in

the field of SCI. The R&D program is focused on a key issue for individuals with SCI, the need to maintain

mobility for as long as possible in order to enhance independent function. A survey of the user population

determines where areas of greatest need exist. An active Mobile Arm Support for adults allows those with

limited arm function greater independence. The shoulder-preserving wheelchair, gait training robotic assist

device, and adaptive exercise equipment are all specifically geared to preserve or enhance mobility in

individuals with SCI. A project on optimized wheelchair suspension keeps people mobile by increasing

comfort and reducing tissue loading.
3-4 NIDRR Program Directory FY 2006 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

California

Rehabilitation Engineering Research Center: Develop and Evaluate

Technology for Low Vision, Blindness, and Multi-Sensory Loss

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

rerc@ski.org

www.ski.org/Rehab

Principal Investigator: John A. Brabyn, PhD 415/345-2110

Public Contact: Deborah Gilden, PhD 415/345-2000; Fax: 415/345-8455

Project Number: H133E060001

Start Date: August 01, 2006

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 06 $950,000

Abstract: This Center conducts a program of research and development to enhance the independence of

blind, visually impaired, and deaf-blind individuals. Research includes investigation of assessment methods to

guide rehabilitation of infant cortical visual impairment; practical innovations in assessment and interventions

for elders with visual impairments; and development of independent assessment guidelines for emerging

visual prostheses. The Center also conducts research in access to graphical information for blind, visually

impaired, and deaf-blind persons, developing tools for rapid screen overview, auditory and tactile graph

presentation, image classification, and on-demand production of tactile street maps. To address signage and

travel information, the project is investigating information interfaces for travelers who are blind or visually

impaired, and innovative computer vision methods to find and read existing print signs and labels. To address the rising barriers to accessing visual displays and appliances for employment and daily living, there is

a designer education campaign and development of a universal talking LCD/LED display reader, practical

consumer tools, and jobsite adaptations for employees who are blind or visually impaired. Other projects

include development of a new-generation robotic finger-spelling hand for deaf-blind communication, and

pilot investigations of difficulties in lipreading and sign language reading experienced by those with combined

auditory and visual impairment.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-5

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Colorado

Rehabilitation Engineering Research Center for the Advancement of

Cognitive Technologies (RERC-ACT)

University of Colorado

Health Sciences Center

1245 East Colfax, Suite 200

Denver, CO 80218

cathy.bodine@uchsc.edu

www.rerc-act.org

Principal Investigator: Cathy Bodine

Public Contact: 303/315-1281; Fax: 303/837-1208

Project Number: H133E040019

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $850,000; FY 05 $850,000; FY 06 $850,000

Abstract: The goal of this RERC is to research, develop, evaluate, implement, and disseminate innovative

technologies and approaches that will have a positive impact on the way in which individuals with significant

cognitive disabilities function within their communities and workplace. The Center incorporates: (1) a

consumer-driven model for identifying the most significant barriers to independent living and workforce; (2)

an approach that is balanced and uses both well-established and newly emerging technologies in its development projects; (3) a focus both on functional limitations and specific disabilities; and (4) mutually beneficial partnerships with private industry and public agencies. Research activities include: Needs, knowledge,

barriers, and uses of AT by persons with cognitive disabilities; technology for remote family support for

people with cognitive disabilities; influences on AT use, non-use, and partial, and inappropriate use by

persons with traumatic brain injury; AT enhancement of written expression for children and adults; needs

assessment for creating affordable, context-aware technologies; and technology to promote decisionmaking skills and self-determination for students with cognitive disabilities. Development activities include:

Design, implementation, and deployment of context aware technologies for persons with cognitive disabilities residing in community living environments; development of HealthQuest, an Internet-based product that

enables individuals with intellectual disabilities to become active participants in their own health care; XML

repository of common tasks; batteryless micropower sensors for context aware technologies; perceptive

animated interfaces for workforce training; and environmentally appropriate behavioral cues for individuals

with TBI.
3-6 NIDRR Program Directory FY 2006 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

District of Columbia

Rehabilitation Engineering Research Center on Hearing Enhancement

Gallaudet University

Department of Hearing, Speech, and Language Sciences

800 Florida Avenue, NE

Washington, DC 20002

matthew.bakke@gallaudet.edu

www.hearingresearch.org

Principal Investigator: Matthew H. Bakke, PhD

Public Contact: 202/651-5335 (V/TTY); Fax: 202/651-5324

Project Number: H133E030006

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $949,999; FY 04 $949,024; FY 05 $949,480; FY 06 $949,998

Abstract: The mission of this RERC is to build and test components of a new, innovative model of aural

rehabilitation tools, services, and training, in order to improve assessment and fitting of hearing technologies

and to increase the availability, knowledge, and use of hearing enhancement devices and services. Component A: (1) develops and evaluates new methods for field evaluation and fitting of hearing aids; (2) develops

and evaluates techniques to enhance auditory self-monitoring; and (3) develops methods for predicting the

speech-to-interference ratio and intelligibility of speech for a hearing aid when used with a wireless telephone. Component B conducts a needs assessment survey of people who use hearing technologies and

evaluates the use of Bluetooth technology as a means of improving and expanding wireless connection to a

hearing aid. Component C investigates environmental factors affecting children’s speech recognition abilities

in classroom settings. Component D investigates the use of distortion product otoacoustic emission and

reflectance for diagnosis of hearing loss and tinnitus; and creates and standardizes sets of synthesized

nonsense syllables for use in hearing aid research. Component E develops a new, innovative model for the

delivery of aural rehabilitation services to adults with hearing loss. In addition the RERC conducts a program

of training and dissemination that will reach a diverse audience of people, both consumers and professionals.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-7

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Florida

Rehabilitation Engineering Research Center on Technology for

Successful Aging

University of Florida

101 South Newell Drive, Suite 2101

Gainesville, FL 32611

wmann@hp.ufl.edu

www.rerc.ufl.edu

Principal Investigator: William C. Mann, PhD 352/392-2617

Public Contact: Nate Pendell, Center Coordinator 352/273-6817 (V/TTY); Fax: 352/273-6042

Project Number: H133E010106

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 01 $900,000; FY 02 $900,000; FY 03 $899,999; FY 04 $900,000; FY 05

$899,999; FY 06 $0 (No-cost extension through 9/30/2007)

Abstract: The RERC-Tech-Aging conducts research, development, education, and information dissemination work on technology for successful aging. Projects of the RERC focus on the closely related areas of

communications, home monitoring, and “smart” technologies. The technology driving the focus for this

RERC is developing rapidly and requires an understanding of current and emerging technology areas,

including wireless technology, computers, sensors, user interfaces, control devices, and networking. Successful integration of this technology into products and systems for older persons requires an understanding

of their complex health, independence, and quality-of-life issues. The RERC-Tech-Aging tests currently

available home monitoring products and demonstrates their effectiveness in relation to independence, quality

of life, and health related costs. The RERC-Tech-Aging also identifies needs and barriers to home monitoring and communication technology, and addresses needs of special populations including rural-living, elders,

and people aging with disability. The RERC-Tech-Aging brings together national expertise to meet this

challenge, including major universities, industry leaders working in this area, major aging or aging-related

organizations, major federal agencies that relate to funding or services in this area, other NIDRR-funded

RERCs and RRTCs, and service-related organizations that assist in identifying study participants.
3-8 NIDRR Program Directory FY 2006 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Mobile Wireless

Technologies for Persons with Disabilities

Georgia Institute of Technology

Center for Advanced Communications Policy (CACP)

500 Tenth Street, NW

Atlanta, GA 30332

rerc@cacp.gatech.edu

www.wirelessrerc.org

Principal Investigator: Helena Mitchell, PhD; Michael Jones, PhD (Shepherd Center); John Peifer

(Georgia Tech) 404/894-0058 (Mitchell); 404/350-7595 (Jones); 404/894-7028 (Peifer)

Public Contact: Lynzee Head 404/385-4651; Fax: 404/385-0269

Project Number: H133E010804

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 01 $1,000,000; FY 02 $1,000,000; FY 03 $1,000,000; FY 04 $1,000,000; FY

05 $1,000,000; FY 06 $0 (No-cost extension through 12/31/2006)

Abstract: This RERC develops appropriate and effective applications of wireless technologies that enhance

the independence of people with disabilities. With an overall goal of promoting the independence and

autonomy of people with disabilities, the RERC has two primary aims: (1) ensure equitable access to mobile

wireless products and services by people with disabilities of all ages and abilities; and (2) investigate promising applications of mobile wireless technologies in support of employment, independent living, and community integration of people with disabilities. To accomplish these aims, the RERC is organized into three main

sections: (1) the Research section investigates needs, policies, and promising applications of mobile wireless

technologies to promote independence. Research initiatives include assessment of user needs, evaluation of

emerging technologies, and policy initiatives that influence the practices, policies, and regulations that affect

accessibility of wireless technologies; (2) the Development section includes projects that address universal

access, investigation of new applications of wireless technologies, and innovative design solutions to support

independent living of people with disabilities; (3) the Training and Dissemination section promotes the

synthesis of new knowledge into practice.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-9

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Workplace

Accommodations

Georgia Institute of Technology

Center for Assistive Technology & Environmental Access

490 Tenth Street, NW

Atlanta, GA 30318

workrerc@catea.org

www.workrerc.org

Principal Investigator: Karen Milchus; Jon Sanford 404/894-0393

Public Contact: Karen Milchus 800/726-9119404/894-1414; Fax: 404/894-9320

Project Number: H133E020720

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 02 $899,997; FY 03 $900,000; FY 04 $899,999; FY 05 $899,999; FY 06

$900,000

Abstract: This RERC identifies, designs, and develops devices and systems to enhance the workplace

productivity of people with disabilities. Universal design is a primary focus of the Center: making the design

of products and environments usable by all workers to the greatest extent possible, without the need for

adaptation or specialized design. The RERC’s research projects evaluate existing workplace products and

services and determine areas where further product development is needed. The Center also studies archival materials to identify factors that contribute to successful or unsuccessful outcomes, and analyzes policies

and practices that may influence the nature and availability of workplace accommodations for persons with

disabilities. The RERC’s development activities focus on Remote Services and Universal Design in the

Workplace. The Remote Services projects investigate ways that remote technologies such as

videoconferencing and telework can be used to facilitate employment and provide technical support services

to people with disabilities. The Universal Design projects work with manufacturers to develop new generations of universally designed and accessible products. Digital human modeling tools developed by the

project provide visualizations of products or systems with human interaction and movement and reduce the

need for preliminary physical prototypes. Products are developed for workers in office, manufacturing,

retail/sales, service industry, and other environments. Finally, training, technical assistance, and dissemination

activities on workplace accommodations and universal design promote the transfer of new knowledge into

practice.
3-10 NIDRR Program Directory FY 2006 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Wheeled Mobility

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

randy.bernard@arch.gatech.edu

mobilityrerc.catea.org

Principal Investigator: Stephen H. Sprigle, PhD

Public Contact: 404/385-4302; Fax: 404/894-9320

Project Number: H133E030035

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,988; FY 04 $949,951; FY 05 $949,975; FY 06 $949,998

Abstract: The goal of this RERC is to undertake a major shift in the way wheeled mobility is conceptualized and understood, from the design of assistive devices that enable some individuals to perform some

activities, to the design of a broad range of interventions that enable as many individuals as possible to

actively engage and participate in everyday community life. Research activities include: (1) User Needs and

Design Input uses participatory focus groups to identify needs of wheelchair users; (2) User Needs of Older

Adults assesses the needs of older adults living at home and in other residential settings; (3) Effects of

Environment and Mobility Technology on Participation and Activity measures the influences of environmental

barriers and specialized wheelchair technology on participation and activity in everyday life; (4) Efficacy of

Animation and Visualization Training uses computer simulation techniques to investigate their efficacy in

improving mobility training; and (5) Clinical and Functional Implications of Seating Standards and Guidelines

studies the relationship between standardized measures of cushion performance and actual impact on

wheelchair users. Development efforts include: (1) development and marketing of new mobility devices in

collaboration with industry design partners; (2) development of a wheelchair for frail elders that can be used

in any residential environment; (3) interventions to overcome barriers to participation including guidelines

and technologies to help wheelchair users overcome environmental and technological barriers; (4) development of animation and visualization training through computer simulations to improve training in transfers and

outdoor mobility; and (5) development of valid wheelchair cushion test methods which enables clinicians to

prescribe appropriate wheelchair cushions based on positioning and load distribution.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-11

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center for Wireless Technologies

Georgia Institute of Technology

Center for Advanced Communications Policy (CACP)

500 Tenth Street, NW

Atlanta, GA 30332-0620

rerc@cacp.gatech.edu

www.wirelessrerc.org

Principal Investigator: Helena Mitchell, PhD 404/385-4640

Public Contact: Lynzee Head 404/385-4651; Fax: 404/385-0269

Project Number: H133E060061

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 06 $949,999

Abstract: The Rehabilitation Engineering Research Center for Wireless Technologies’ mission is to: (1)

promote equitable access to and use of wireless technologies by persons with disabilities; and (2) encourage

adoption of Universal Design in future generations of wireless technologies. To accomplish these aims, the

RERC is organized into three main project sections: The Research Section is comprised of four research

initiatives: Facilitating User Centered Research is designed to establish a research portal that communicates

to industry the needs of people with disabilities for wireless technologies. Customer-driven Usability Assessment enhances the usability of future generations of cell phones and other wireless products by developing a

methodology for assessing their usability by representative users with disabilities. Collaborative Policy

Approaches to Promote Equitable Access develops, implements, and evaluates specific policy initiatives

related to accessible wireless technologies and services. Advanced Auditory Interfaces develops, tests, and

disseminates guidelines for the design of advanced auditory interfaces for cell phones and other handheld

electronic devices. The Development Section includes four projects that promote equitable access to and

use of wireless technologies by persons with disabilities through the development of prototype designs:

Alternative Interfaces continues its work on the V2 standards for universal remote consoles and Real-time

Location-based Information Services expands on previous work on the RERC’s personal captioning system

by addressing the needs of patrons with vision or hearing impairments in three different venues – exhibit

spaces, airports, and hospitals. Development of Wireless Emergency Communications and Ensuring Access

to Emergency Assistance both focus on the area of wireless emergency communications for people with

disabilities; developing wireless communication technology to be used by emergency personnel to contact

individuals with disabilities, and by people with disabilities to signal the need for assistance. The Training and

Dissemination Section promotes the synthesis of new knowledge into practice with the RERC’s State of the

Science conference and a number of initiatives designed to educate consumers, providers, and other professionals, including: university courses, an annual student design competition, conference tutorials and workshops, all geared toward access and usability of mobile wireless technologies.
3-12 NIDRR Program Directory FY 2006 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Recreational

Technologies and Exercise Physiology Benefiting Persons with Disabilities

(RERC RecTech)

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Suite 712

Chicago, IL 60608-6904

jrimmer@uic.edu

www.rectech.org

Principal Investigator: James H. Rimmer, PhD

Public Contact: 312/413-9651; Fax: 312/355-4058

Project Number: H133E020715

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 02 $899,536; FY 03 $899,725; FY 04 $899,942; FY 05 $899,756; FY 06

$899,952

Abstract: This program researches access to recreational opportunities and physical endurance of people

with disabilities, targeting four primary areas: (1) increased access to fitness and recreation environments;

(2) interventions to increase physical activity and recreation participation; (3) adherence strategies to reduce

physical activity relapse and dropout rates; and (4) randomized clinical trials to evaluate improvements in

health and function. Research and development projects include: (1) a comprehensive needs assessment that

involves ongoing assessment of consumer needs as they pertain to existing and emerging recreational and

fitness technologies; (2) research on the use of information technology and a newly designed environmental

accessibility instrument for facilitating access to recreational and fitness environments and promoting improved health and function; (3) research on the use of “teleexercise” technology for promoting participation

and for monitoring intensity and physiological/psychological outcomes of home-based exercise programs;

(4) research and development of technology to create virtual exercise environments to promote greater

adherence to exercise and thereby improved health and function; (5) development of technology to allow

users adaptive control of exercise machines; (6) development of broadly applicable aftermarket accessory

kits for adapting existing cardiovascular exercise equipment for use by people with disabilities and determining the efficacy of the new adaptations in improving fitness; and (7) development of an online RecTech

solutions database of currently available recreational and fitness technologies to make available solutions

more accessible to consumers. Two training projects promote capacity building for future recreation, fitness,

exercise physiology, engineering, and rehabilitation professionals, and two additional training projects

support professional development.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-13

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

RERC on Rehabilitation Robotics and Telemanipulation: Machines

Assisting Recovery from Stroke (MARS)

Rehabilitation Institute Research Corporation

Sensory Motor Performance Program (SMPP) and the Department of Physical Medicine and Rehabilitation

at Northwestern University

345 East Superior Street, Suite 1406

Chicago, IL 60611-2654

medevitt@ric.org; j-patton@northwestern.edu

www.smpp.northwestern.edu/MARS/mars.html

Principal Investigator: W. Zev Rymer, MD, PhD 312/238-3919

Public Contact: Jim Patton, PhD 312/238-1277; Fax: 312/238-2208

Project Number: H133E020724

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 02 $805,453; FY 03 $874,845; FY 04 $896,518; FY 05 $888,042; FY 06

$888,102

Abstract: MARS-RERC focuses its research and development on restoring function in hemispheric stroke

survivors. Five projects assess different approaches that have the potential to improve performance of the

upper extremity, and one project attempts to restore gait and fluid locomotion to the lower extremities.

These projects include: the ARM Guide, a robotic therapy for force training of the upper extremity in

chronic hemiparetic stroke; Lokomat-Gait restoration in hemiparetic stroke patients using goal-directed,

robotic-assisted treadmill training; Augmented Reality Robotic Rehabilitation, which is in the development of

a robotic system with an augmented reality interface for rehabilitation retraining of arm function for braininjured individuals; Robotic Assisted Finger Extension, rehabilitation of finger extension in chronic hemiplegia; and T-WREX, a home-based telerehabilitation system for improving functional hand and arm movement

recovery following stroke utilizing an anti-gravity orthosis and video games to track progress. In addition to

these projects, MARS-RERC purpose is train undergraduate engineering students, medical students,

physician residents, graduate students in engineering and neuroscience, and allied health clinicians, including

physical and occupational therapists in the area rehabilitation robotics. The broad intent of MARS-RERC is

to develop robotic devices or machines that assist the therapist in providing treatments that are rationally

based, intensive, and long in duration. This project is a collaboration of the Rehabilitation Institute of Chicago (RIC), the Catholic University of America (CUA) and National Rehabilitation Hospital in Washington,

D.C., the University of Illinois at Chicago (UIC), and the University of California at Irvine (UCI).
3-14 NIDRR Program Directory FY 2006 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center in Prosthetics and Orthotics

Northwestern University

Feinberg School of Medicine

345 East Superior Street, Room 1441

Chicago, IL 60611

reiu@northwestern.edu; sgard@northwestern.edu

www.medschool.northwestern.edu/depts/repoc/

Principal Investigator: Steven A. Gard, PhD 312/238-6500

Public Contact: Resource Unit Help Line 312/238-6524 (V); 312/238-6530 (TTY); Fax: 312/238-6510

Project Number: H133E030030

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,998; FY 04 $950,000; FY 05 $949,999; FY 06 $950,000

Abstract: This Center conducts ten research projects, three of which are pilot studies. In the area of human

locomotion the objectives are to conduct quantitative studies that include non-disabled gait, modeling of gait,

roll-over shape influence on transtibial amputee gait, gait initiation, shock absorption studies, the role of the

spine in walking, transfemoral socket design studies, and evaluation of stance-control orthotic knee joints.

Pilot studies, where preliminary data is not available, are proposed on partial foot prothesis/orthosis systems, on evaluation of Ankle Foot Orthoses and on the design of a Shape & Roll foot for children. Six

developmental projects include a simple gait monitoring instrument (Direct Ultrasound Ranging System), a

new prosthetic ankle joint that adapts to inclines, and a manual through which individuals in low-income

countries can make their own artificial feet. In addition, two upper-limb prosthetics development projects

are proposed that deal with reaching, manipulation, and grasping. Finally, an outcomes measurement tool is

developed for prosthetics and orthotics (P&O) facilities in their reporting to the American Board of Certification. The vision for this RERC is to improve the quality of life for persons who use prostheses and

orthoses through creative applications of science and engineering to the P&O field. The goal is to uncover

new knowledge and understanding in P&O and to bring more quantification to the field, which will enable

them to develop new concepts and devices to improve the quality, cost-effectiveness, and delivery of P&O

fittings.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-15

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Technology Access for

Landmine Survivors

Center for International Rehabilitation

211 E. Ontario StSuite 300

Chicago, IL 60611

kreisinger@cirnetwork.org

www.cirnetwork.org

Principal Investigator: Yeongchi Wu, MD; Kim Reisinger, PhD

Public Contact: Maggie Coleman, Communications Officer 312/229-1359 ext. 248; Fax: 312/229-1370

Project Number: H133E030017

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $950,000; FY 04 $950,000; FY 05 $950,000; FY 06 $950,000

Abstract: The Center strives to improve the quality and availability of amputee and rehabilitation services

for landmine survivors by focusing on the development of “appropriate technology”, i.e. technology that is

most suitable to the limited technical and human resources available in most mine-affected regions through

the application of research methodologies, the development of mobility aids, and the creation of educational

materials, all of which are designed specifically for mine-affected populations and disseminated through a

network of rehabilitation service providers in mine-affected regions. Laboratory-based research projects

investigate issues of importance relating to transtibial alignment, ischial containment socket trim lines as they

relate to the gait of transfemoral amputees, and the evaluation of a non-toxic resin for the direct lamination of

prosthetic sockets. Field-based research evaluates an anatomically-based transtibial alignment methodology

and a wheelchair prototype manufacturing and dissemination strategy. Development projects, many of which

contain research components, can be classified into two areas: those that improve the service delivery

through improved fabrication techniques, and those that develop appropriate prosthetic components and

mobility aids. In order to promote the successful transfer of techniques and technologies that are developed,

the RERC creates training materials that describe the manufacture, assembly, and use of the technique or

devices developed under the research and development program. Additionally, because the current number

of trained prosthetic technicians in developing countries is far from sufficient to adequately meet the needs of

landmine survivors, the center produces education and training materials covering the basic science of

prosthetics and orthotics. All materials are adapted to the specific languages, culture, and needs of the mineaffected regions served by the RERC and distributed through a blended distance learning network.
3-16 NIDRR Program Directory FY 2006 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Michigan

Rehabilitation Engineering Research Center on Wheelchair

Transportation Safety

University of Michigan

Transportation Research Institute

2901 Baxter Road

Ann Arbor, MI 48109-2150

www.rercwts.pitt.edu

Principal Investigator: Lawrence W. Schneider, PhD (Michigan); Patricia Karg, PhD (Pittsburgh); Gina

Bertocci, PhD (Louisville); 734/936-1103 (Schneider)

Public Contact: Lawrence W. Scheneider, PhD 734/936-1103; Fax: 734/647-3330

Project Number: H133E060064

Start Date: November 01, 2006

Length: 60 months

NIDRR Officer: William V. Schutz, PhD, MSW, MPH

NIDRR Funding: FY 06 $899,753

Abstract: Research conducted by the RERC on Wheelchair Transportation Safety (RERC WTS) advances the safety, usability, and independence of people who remain seated in their wheelchairs when

traveling in motor vehicles. Research and development projects involve close collaboration with manufacturers, transit providers, vehicle modifiers, clinicians, and consumers to ensure quick translation of results into

meaningful solutions that benefit travelers with mobility disabilities. Projects range from developing innovative solutions for forward-facing and rear-facing wheelchair passenger stations in large accessible transit

vehicles, to investigating issues of school-bus transportation for children seated in WC-19 compliant and

noncompliant wheelchairs, and to improving frontal- and rear-crash protection for occupants in private

vehicles. Continuing research from previous grants, the RERC WTS extends the in-depth investigations of

adverse events involving wheelchair-seated travelers, but also conducts a study of the transportation experience of wheelchair users in large public transit vehicles, including the process of entering and exiting the

vehicle, accessing the wheelchair station, securing the wheelchair and restraining the occupant, and traveling

to and from destinations. In addition to conducting research and development in six project areas, RERC

WTS staff engages in information dissemination, training of future researchers, transferring innovative

technology concepts to the marketplace, developing and revising voluntary industry standards, and convening the second State-of-the-Science Workshop on Wheelchair Transportation Safety. The RERC is a

partnership of the University of Michigan Transportation Research Institute, the University of Pittsburgh, the

University of Louisville, and the University of Colorado.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-17

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

New Jersey

Rehabilitation Engineering Research Center on Children with Orthopedic

Disabilities

New Jersey Institute of Technology

323 M. L. King Street

Newark, NJ 07102

foulds@njit.edu

Principal Investigator: Richard A. Foulds, PhD

Public Contact: 973/596-3335

Project Number: H133E050011

Start Date: November 01, 2005

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $949,700; FY 06 $949,646

Abstract: The Rehabilitation Engineering Research Center on Technology for Children with Orthopedic

Disabilities focuses on research and development assisting children to achieve their full potential as productive citizens. The work plan includes a roster of projects designed to enhance the physical skills of these

children to be successful in learning, playing, and living independently. This project includes three research

and three development projects, as well as training projects serving the needs of children, families, students,

and professionals. Project selection is driven by the RERC on Children with Orthopedic Disabilities’ vision

of RERCs as a source of innovation and of new technologies designed to address the serious problems

faced by children with disabilities. This project is a collaboration of New Jersey Institute of Technology, the

Childrens’ Specialized Hospital, and Rutgers University, bringing together two academic departments of

biomedical engineering with the nation’s largest pediatric rehabilitation hospital.
3-18 NIDRR Program Directory FY 2006 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering Research Center on Technology Transfer

(T2RERC)

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

322 Kimball Tower

Buffalo, NY 14214-3079

jimleahy@acsu.buffalo.edu

cosmos.buffalo.edu/t2rerc

Principal Investigator: Steve Bauer, PhD 716/829-3141, ext. 117

Public Contact: James Leahy 716/829-3141 (V); 800/628-2281 (TTY); Fax: 716/829-2420

Project Number: H133E030025

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,999; FY 04 $950,000; FY 05 $950,000; FY 06 $950,000

Abstract: The activities of this project transfer and commercialize new and improved assistive devices,

conduct research to improve technology transfer practice, and support other stakeholders involved in the

technology transfer process. Four research projects investigate innovative ways to facilitate and improve the

process of technology transfer for all stakeholders: (1) Identify Innovative Technology Transfer Practices -

draws critical success factors from examples of retrospective and prospective AT transfer case studies in

various sectors; (2) Identify Innovative Technology Transfer Policies - traces the outputs and outcomes of

Federal transfer programs supporting AT related projects and assesses their efficacy; (3) Facilitate AT

Industry Innovation through Focused Market Research - provides a context for transfer opportunities

involving the AT industry and for public policy decision making; and (4) Assess the Efficacy of Transferred

Products - determines the extent to which products previously transferred through the T2RERC impact the

functional capabilities of consumers. Four development projects increase the number and quality of successful transfers from RERCs and other sources: (1) Transfer Products through a Supply Push Approach -

facilitates the movement of new or improved prototype inventions to the marketplace through licenses, sales,

or entrepreneurial ventures; (2) Transfer Technologies through a Demand Pull Approach - validates technology needs within the AT industry and introduces advanced technology solutions to address those needs; (3)

Improve the Accessibility of New Mainstream Products - extends participatory research to integrate

consumers’ functional requirements into the design of new mainstream products; and (4) Facilitate RERC

Transfer Activity Through Informatics - establishes a pilot informatics infrastructure and assesses its utility for

increasing communication, collaboration, and transfers between RERCs.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-19

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering and Research Center (RERC) on Universal

Design and the Built Environment at Buffalo

State University of New York (SUNY) at Buffalo

School of Architecture and Planning

378 Hayes Hall

Buffalo, NY 14214

rercud@ap.buffalo.edu

www.ap.buffalo.edu/idea/rercud.asp

Principal Investigator: Edward Steinfeld, ArchD 716/829-3485

Public Contact: Danise Levine 716/829-3485, ext. 329; Fax: 716/829-3861

Project Number: H133E050004

Start Date: November 01, 2005

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $949,996; FY 06 $949,994

Abstract: The RERC on Universal Design and the Built Environment is engaging the public and private

sectors across four broad domains of the built environment: (1) community infrastructure, (2) public buildings, (3) housing, and (4) products. The RERC-UD generates strategically important research, development, education, and dissemination deliverables, to advance the fields of rehabilitation engineering and

environmental design. The RERC-UD deliverables integrate universal design principles within the generally

accepted models, methods, and metrics of design and engineering professionals in the building and manufacturing industries. Research projects document the efficacy of existing universally designed environments, and

generate critical human factors data essential to resolving design and engineering problems. Development

projects create evidence-based guidelines to implement universal design concepts within the tools of the

design professions, and formulate methods to evaluate the usability of designs for people with mobility,

sensory, and cognitive impairments. The usefulness of the guidelines and evaluation methods are demonstrated by applying them to the development of innovative products and environments with industry partners. Training activities emphasize online certificate programs in universal design for design professionals,

builders, manufacturers, and consumer advocates; a web portal and site for students and educators; and

graduate programs that train researchers in advanced methods. Dissemination outputs include traditional

refereed and trade publications, an extensive website with downloadable information products and design

tools, model home demonstrations in local communities across the country, and outreach activities with

professional, business, and standards development organizations. The RERC-UD’s state-of-the-science

conference includes stakeholders in a plan to elevate universal design to an integral component of the

mainstream design and engineering disciplines.
3-20 NIDRR Program Directory FY 2006 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center on Communication

Enhancement

Duke University

Department of Surgery

Division of Speech Pathology and Audiology

Duke University Medical Center, Box 3888

Durham, NC 27710

aac-rerc@mc.duke.edu

www.aac-rerc.com

Principal Investigator: Frank DeRuyter, PhD 919/684-6271

Public Contact: Kevin Caves, ME, ATP 919/681-9983; Fax: 919/681-9984

Project Number: H133E030018

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,977; FY 04 $949,973; FY 05 $949,974; FY 06 $949,976

Abstract: The mission of this RERC is to assist people who use augmentative and alternative (AAC)

technologies in achieving their goals across environments. The goals and objectives of the RERC are to

advance and promote AAC technologies through the outputs and outcomes of research and development

activities and to support individuals who use, manufacture, and recommend these technologies in ways they

value. Research projects cover the following areas: (1) improving AAC technology to better support

societal roles; (2) enhancing AAC access by reducing cognitive/linguistic load; and (3) enhancing AAC

usability and performance. Projects address issues of literacy, telework, specialized vocabulary, contextual

scenes and intelligent agents, improving interface performance, and monitoring and simulating communication

performance. Development activities include: (1) technology and policy watch; (2) new interfaces; and (3)

reducing the cognitive/linguistic burden on AAC users. Activities address monitoring emerging technologies,

standards, and policies; technologies to supplement intelligibility of residual speech, dysarthric speech, and

gesture recognition; brain interface; AAC WebCrawling; and enhancing the role of listeners in AAC interactions.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-21

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Oregon

National Center for Accessible Public Transportation

Oregon State University

Owen Hall 220

Corvallis, OR 97331-2312

ncat@oregonstate.edu

ncat.oregonstate.edu/

Principal Investigator: Katharine Hunter-Zaworski, PhD

Public Contact: Julie Barlow 800/916-0099; Fax: 541/737-3052

Project Number: H133E030009

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $949,479; FY 04 $949,259; FY 05 $949,044; FY 06 $949,260

Abstract: This RERC addresses the need for improvements in the accessibility of public transportation.

This center is both important and timely because of major changes in the travel industry, and the need to

adapt to those changes in a way that provides safe and dignified travel for persons with disabilities. The

transportation focus of this RERC is inter-city travel via air, rail, and bus. Air, rail, and over-the-road buses

(OTRB) account for nearly all of the inter-city public transportation. Accessibility issues focus on persons

with mobility, agility, and hearing disabilities and account for a large percentage of persons with disabilities.

Two areas of research are addressed: (1) the biomechanics of wheelchair transfers in confined spaces; and

(2) the perceptions, reactions, and attitudes of subjects towards existing and proposed accessibility solutions. The biomechanics studies include the use of a sophisticated eight-camera motion analysis system in

conjunction with force plates to determine the motions and forces involved in dependent and independent

transfers in confined spaces, such as an aircraft aisle. The survey-based study includes comprehensive

surveys of groups that are directly involved with accessibility issues including travelers with disabilities, nontravelers with disabilities, and employees of airlines and airports. Drawing on results of their research, the

RERC focuses on four development topics: (1) vehicle boarding technologies; (2) real time passenger

information and communications systems; (3) accessible lavatories; and (4) passenger assistance training

tools and techniques. The accessible lavatory project has two main components; regulations and new

designs for the next generation of aircraft.
3-22 NIDRR Program Directory FY 2006 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Wheelchair

Transportation Safety

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

2310 Jane St, Suite 1300

Pittsburgh, PA 15203

rerc@shrs.pitt.edu

www.rercwts.pitt.edu

Principal Investigator: Patricia Karg 412/586-6906

Public Contact: Debbie Keelan 412/586-6905; Fax: 412/586-6910

Project Number: H133E010302

Start Date: November 01, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $868,840; FY 02 $899,057; FY 03 $897,745; FY 04 $899,264; FY 05

$898,054; FY 06 $0 (No-cost extension through 10/31/2007)

Abstract: This RERC aims to improve the safety of wheelchair users who remain seated in their wheelchair

while using public and private motor-vehicle transportation. RERC tasks investigate and develop new

wheelchair tiedown and occupant restraint system technologies, including wheelchair-integrated restraints

and universal docking concepts, that enable wheelchair users to secure and release their wheelchair independently and quickly, and use an effective occupant restraint system without the need for assistance. The

RERC also researches the issues and factors involved in providing improved occupant protection to wheelchair-seated drivers and passengers in rear and side impacts, and uses a multifaceted approach, including

in-depth investigations of real-world accidents, to investigate the incidence, severity, and causes of injuries

to wheelchair-seated occupants in different sizes of vehicles and in different types of crashes and non-impact

incidents experienced during vehicle motion. In particular, this RERC explores the need for, and suitability

of, using different levels of wheelchair securement and occupant restraint in larger public transit vehicles,

with the goal of recommending and developing equipment and systems that provide for a safe ride and that

are more compatible with the operational needs of the transit environment. The program includes a comprehensive research and development effort that involves consumers, manufacturers, students, clinicians,

transport providers, and rehabilitation technology experts. The RERC also has active programs of information dissemination, training, and technology transfer using personnel, mechanisms, and facilities that have

been previously established at the University of Pittsburgh/University of Michigan.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-23

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Telerehabilitation

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

2310 Jane Street, Suite 1300

Pittsburgh, PA 15203

dkeelan@pitt.edu

www.rerctr.pitt.edu

Principal Investigator: David M. Brienza, PhD 412/586-6907

Public Contact: Debby Keelan 412/586-6905; Fax: 412/586-6910

Project Number: H133E040012

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 04 $849,890; FY 05 $849,930; FY 06 $849,922

Abstract: The vision of this RERC is to serve people with disabilities by researching and developing

methods, systems, and technologies that support remote delivery of rehabilitation and home health care

services for individuals who have limited local access to comprehensive medical rehabilitation outpatient and

community-based services. Research and development activities include: (1) Telerehabilitation Infrastructure

and Architecture: development of an informatics infrastructure and architecture that builds on existing

programs and technologies of the University of Pittsburgh Medical Center’s e-Health System, supports the

RERC’s research and development activities, meets HIPAA requirements, provides a test-bed for third

party telerehabilitation applications, and can be used as a model for future telerehabilitation infrastructure;

(2) Telerehabilitation Clinical Assessment Modeling: development of a conceptual model for matching

consumers with telerehabilitation technology. The model is user-oriented and driven by consumer experiences regarding satisfaction, simplicity, and reimbursability of telerehabilitation; (3) Teleassessment for the

Promotion of Communication Function in Children with Disabilities: development of a web-based

teleassessment infrastructure that links therapists and child participants, allowing therapeutic content to be

adapted to the child’s individual progress and abilities; (4) Remote Wheeled Mobility Assessment: determines if individuals with mobility impairments can obtain appropriate prescriptions for wheeled mobility

devices through the use of a telerehabilitation system based upon information and telecommunications

technologies; (5) Behavioral Monitoring and Job Coaching in Vocational Rehabilitation: researches technologies to conduct remote delivery of rehabilitation services to individuals who have limited access to

rehabilitation services that are necessary to participate in and achieve education and employment outcomes

in their community; and (6) Remote Accessibility Assessment of the Built Environment: determines the

effectiveness of a remote accessibility assessment system in evaluating the built environment of wheeled

mobility device users.
3-24 NIDRR Program Directory FY 2006 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Universal Interface and

Information Technology Access

University of Wisconsin/Madison

Trace Research and Development Center

2107 Engineering Centers Building

1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

trace.wisc.edu/itrerc

Principal Investigator: Gregg C. Vanderheiden, PhD 608/263-5788

Public Contact: Kate Vanderheiden 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E030012

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $1,000,000; FY 04 $1,000,000; FY 05 $1,000,000; FY 06 $1,000,000

Abstract: The focus of this RERC is on both access to information (e.g., content) in its various forms, as

well as access to interfaces used within content and by electronic technologies in general. The research and

development program is carefully designed to provide an interwoven set of projects that together advance

accessibility and usability in a fashion that takes into account, and supports, the full range of access strategies used by manufacturers and people with disabilities. These strategies range from enhancing the design of

mainstream products that can be used by individuals with different ability sets to enhancing the ability of

users to deal with the information and interfaces as they encounter them. Key to these projects are the

development of new models and approaches for characterization of the functional requirements of current

and future interfaces, and a better understanding of the type, diversity, and similarity of functional limitations

across etiologies and disabilities. Research activities include: model generation and initial pilot studies for the

characterization of interface requirements (current and emerging) and cross-disability user abilities; abstract

user interfaces and human interface sockets; emerging technologies and future research needs; and accessible real-time visual information presentation in meetings and virtual meetings. Development projects

include: tools to facilitate the incorporation of cross-disability interface features in public information technologies; tools to facilitate AT-IT interoperability; server-based and “virtual assistive technology; “ and

support for national and international standards and guidelines efforts.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-25

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Telecommunication

Access

University of Wisconsin/Madison

Trace Center, College of Engineering

2107 Engineering Centers Building

1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

trace.wisc.edu/telrerc

Principal Investigator: Gregg C. Vanderheiden, PhD (Trace); Judy Harkins, PhD (Gallaudet University)

608/263-5788 (Trace); 202/561-5257 (Gallaudet)

Public Contact: Kate Vanderheiden 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E040013

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $850,000; FY 05 $924,988; FY 06 $850,000

Abstract: The focus of this RERC is on advancing accessibility and usability in existing and emerging

telecommunications products for people with all types of disabilities. Telecommunications accessibility is

addressed along all three of its major dimensions: user interface, transmission (including digitization, compression, etc.), and modality translation services (relay services, gateways, etc.). Research and development

projects cover three areas: (1) development of tools, techniques, and performance-based measures that can

be used to evaluate current and evolving telecommunication strategies including visual communication and

cognitive access; (2) solving the problems faced by individuals using hearing aids or cochlear implants with

digital phones (including development of tools that users can employ to match appropriate hearing technologies with telecommunication technologies); and (3) improving access to emerging telecommunications for

people with visual, hearing, physical, and cognitive disabilities – particularly digital and IP-based systems

including emergency communication. The RERC looks at advances that have both short- and long-term

outcomes related to assistive technologies (AT), interoperability, and universal design of telecommunications.

In addition, the RERC provides technical assistance to government, industry, and consumers, training for

industry, and education for new researchers in this field. The RERC is a collaboration of the Trace Center at

the University of Wisconsin and the Technology Access Program at Gallaudet University.
3-26 NIDRR Program Directory FY 2006 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Accessible Medical

Instrumentation

Marquette University

Department of Biomedical Engineering

P.O. Box 1881

Milwaukee, WI 53201

jack.winters@marquette.edu

www.rerc-ami.org

Principal Investigator: Jack Winters, PhD; Molly Follette Story, MS 414/288-6640 (Winters); 707/578-

6839 (Story)

Public Contact: June Isaacson-Kailes 310/821-7080800/832-0524; Fax: 909/469-5503

Project Number: H133E020729

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $901,131; FY 03 $899,614; FY 04 $899,155; FY 05 $899,870; FY 06

$899,572

Abstract: The RERC on Accessible Medical Instrumentation: (1) increases knowledge of, access to, and

utilization of healthcare instrumentation and services by individuals with disabilities; (2) increases awareness

of and access to employment in the healthcare professions by individuals with disabilities; and (3) serves as

a national center of excellence for this priority topic area. Specific research projects include: (1) needs

analysis for people with disabilities as both recipients and providers of healthcare services, and for manufacturers of healthcare instrumentation; (2) usability analyses to determine what makes certain medical instrumentation either exemplary or problematic yet essential to healthcare service delivery; (3) accessibility and

universal usability analysis to identify classification and measurement approaches that could be used to

explore metrics for accessibility of medical instrumentation; and (4) policy analyses to explore how medical

policies affect healthcare utilization and employment in the healthcare professions of persons with disabilities.

Specific development projects include: (1) development of tools for usability and accessibility analysis; (2)

development of modified and new accessible medical instrumentation; (3) monitoring of, and involvement in

development of, emerging, accessible healthcare technologies; and (4) development of design guidelines for

accessible medical instrumentation and model policies for healthcare service delivery.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-27

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Wayfinding Technologies for People with Visual Impairments: Research

and Development of an Integrated Platform

Sendero Group, LLC

1118 Maple Lane

Davis, CA 95616-1723

mikemay@senderogroup.com

www.wayfinding.org

Principal Investigator: Michael May

Public Contact: 530/757-6800; Fax: 530/757-6830

Project Number: H133A011903

Start Date: December 01, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $449,065; FY 02 $449,895; FY 03 $449,444; FY 04 $445,486; FY 05

$447,929; FY 06 $0 (No-cost extension through 10/31/2007)

Abstract: This project develops a hardware and software platform that provides accessible location and

navigation information for people who are blind or who have visual impairments who are traveling in indoor

and outdoor environments. Development activities focus on creating an effective user interface and developing a common hardware and software platform that exploits the Global Positioning System (GPS) and other

current and emerging navigation technologies. Specific activities include integrating navigation aids that have

been developed by Sendero LLC (GPS Talk) and by the University of California-Santa Barbara/CMU

group headed by Jack Loomis (the Personal Guidance System, or PGS). The platform also accesses

information from other devices, including Talking-SignsTM type devices, intersection signalization controls, an

indoor digital sign system to be developed during this project at the University of Minnesota, a spatialized

tactile stimulator to be developed at UCSB, a dead reckoning pedestrian navigation system, and cellular

phones with GPS capabilities. For navigating in outdoor environments, a system could aid pedestrians who

are blind at complex intersections and roundabouts, and devices could assess and prevent veer.
3-28 NIDRR Program Directory FY 2006 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Community Research for Assistive Technology

California Foundation for Independent Living Centers (CFILC)

1029 J Street, Suite 120

Sacramento, CA 95814

myisha@cfilc.org

www.atnet.org/CR4AT/home.html

Principal Investigator: Patricia Yeager

Public Contact: Myisha Reed, Project Director 916/325-1690 (V); 916/325-1695 (TTY); Fax: 916/325-

1699

Project Number: H133A010702

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 01 $299,910; FY 02 $299,893; FY 03 $229,150; FY 04 $229,534; FY 05

$299,050; FY 06 $0 (No-cost extension through 9/30/2007)

Abstract: This project increases the capacity of the independent living community to work with its members

and stakeholders to collect research data on access and use of AT to improve the lives of people with

disabilities. Using a participatory research approach, the California Foundation for Independent Living

Centers (CFILC) is using an ecological model to develop cumulative research data on the use of and access

to AT by people with disabilities. University researchers train participants in research methods and assist

with data collection and analysis. Community advocates conduct focus groups, surveys, and action research

in their respective regions. Advocates also train university students in community-based research related to

AT and independent living.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-29

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Fundamental Issues in Wayfinding Technologies

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

rerc@ski.org

www.ski.org/Rehab

Principal Investigator: John A. Brabyn, PhD 415/345-2110

Public Contact: Deborah Gilden, PhD 415/345-2000; Fax: 415/345-8455

Project Number: H133A060056

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 06 $449,872

Abstract: This project conducts a broad spectrum of research to strengthen the foundations of wayfinding

technology for assisting blind and visually impaired individuals to travel safely and independently. Rather than

developing additional devices, this project addresses fundamental questions in wayfinding technology

research: What information do blind and visually impaired travelers really want and need for safe independent travel? Why is there such an extreme range in navigational facility within the visually impaired population? What are the upper limits of the information that can be gained from traditional orientation and mobility

training and environmental cues? How are the subtle auditory cues affected in subpopulations with different

types of hearing loss? How should wayfinding performance, and barriers to it, be quantified so that future

progress can be measured? What is the role of advance travel planning? By pursuing answers to these

fundamental questions rather than adding more technology-driven devices to the existing selection, this

research improves understanding about the efficacy and optimal applications of navigation and travel technologies and techniques. This provides a research-based foundation to inform and improve: (1) orientation

and mobility instructional strategies; (2) the design of new wayfinding technologies; and (3) future research.
3-30 NIDRR Program Directory FY 2006 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Iowa

Technology for Independence: A Community-Based Resource Center

(TI:CBRC)

University of Iowa

Law, Health, Policy, and Disability Center

431 Boyd Law Building

Iowa City, IA 52242

peter-blanck@uiowa.edu

james-schmeling@uiowa.edu

www.disability.law.uiowa.edu

Principal Investigator: Peter D. Blanck, PhD, JD 319/335-9043

Public Contact: James Schmeling, JD 319/335-8458; Fax: 319/335-9098 (Blanck); 319/335-9764

(Schmeling)

Project Number: H133A021801

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $299,965; FY 03 $299,945; FY 04 $299,951; FY 05 $299,985; FY 06

$299,993

Abstract: The CBRC builds and enhances the capacity of community-based and consumer-directed

disability organizations to design, implement, and disseminate research activities and projects that promote

environmental access and use of technology for independence. The CBRC uses a combination of implementation strategies such as leadership development, training, and technical assistance activities, web-assisted

audioconference training, distance education, and three annual onsite symposia in Iowa City, Houston, and

Washington, DC. CBRC activities are directed to selected research teams, research centers, communitybased disability organizations, and University research centers. Using multi- and inter-disciplinary models,

the CBRC builds and enhances the capacity of these and other entities to conduct research that is both

scientifically rigorous and relevant to real-world social, policy, and legal interests. The research team framework pairs researchers from community-based organizations with researchers from university-based research centers to improve existing and future collaborative relationships. The research pairs comprise

individuals with diverse backgrounds, in terms of their disability type and severity, ethnicity, and socioeconomic experiences. The participants form close working relationships designed to advance knowledge in the

areas related to technology for independence and environmental access. The project merges the national

experience and expertise of ILRU regarding independent living and principles of choice and self-determination, with the nationally recognized research expertise of LHPDC in the areas of technology access and use,

employment policy, and civil rights.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-31

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Kansas

Mental Retardation and Technology Disability and Rehabilitation

Research Project

University of Kansas

Beach Center on Disability

1200 Sunnyside Avenue, Room 3136

Lawrence, KS 66045-7534

wehmeyer@ku.edu

www.beachcenter.org

Principal Investigator: Michael Wehmeyer, PhD

Public Contact: 785/864-0723; Fax: 785/864-3458

Project Number: H133A010602

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 01 $299,871; FY 02 $299,778; FY 03 $299,715; FY 04 $299,871; FY 05

$299,602; FY 06 $0 (No-cost extension through 9/30/2007)

Abstract: This project supports the ability of people with intellectual disabilities (mental retardation) and

other cognitive disabilities to use electronic and information technology as well as assistive technology and

technologies that involve universal design. It examines current technology design features, gaps that exist in

utilization of technologies, what state-of-the-art technology exists or is emerging that would provide benefits,

and what modifications to existing or new technology would enhance this population’s inclusion in the

community and integration into the workplace. The project includes two national consensus conferences, in

conjunction with national conferences held annually or by American Association on Mental Retardation

(AAMR) and The Arc of the United States, to address issues of technology use. Additional activities include

reviewing and synthesizing the extant literature, canvassing existing disability-related technology advocates

and associations, and product development and refinement. The project has also established a Special

Interest Group on Technology and Mental Retardation through the AAMR, which allows stakeholders in the

field the opportunity to participate in all project activities. A national expert advisory panel consisting of

representatives from national disability organizations, manufacturers, people with mental retardation, experts

in the field, and parent/family representatives are involved in all consensus-building activities and advise the

project through its duration. The project is a collaboration of the Beach Center on Disability at the University of Kansas, The Arc, the AAMR, AbleLink Technologies, the Coleman Institute on Cognitive Disabilities, the Self-Advocate Coalition of Kansas, and the Joseph P. Kennedy Jr. Foundation.
3-32 NIDRR Program Directory FY 2006 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

North Carolina

Advancing Assistive Technology Outcomes

Duke University

Division of Speech Pathology and Audiology

DUMC-3888

Durham, NC 27710

frank.deruyter@duke.edu

www.AToutcomes.com

Principal Investigator: Frank DeRuyter, PhD

Public Contact: Frank DeRuyter, PhD 919/684-6271 (V); 919/684-6626 (TTY); Fax: 919/681-9984

Project Number: H133A010401

Start Date: November 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $449,787; FY 02 $449,932; FY 03 $449,967; FY 04 $449,994; FY 05

$449,986; FY 06 $0 (No-cost extension through 10/31/2007)

Abstract: This program advances the field of AT outcomes measurement. Research activities include: (1)

performing a critical analysis of existing approaches to measurement and further developing instruments that

are promising; (2) identifying unmet needs and assessing barriers to AT outcomes measurement; and (3)

undertaking a prospective longitudinal study of factors associated with assistive device adoption, use, and

discontinuance. Development activities include: (1) developing and evaluating independent electronic data

collection or computer-assisted systems for the capture, analysis, and interpretation of AT outcomes information; (2) developing and evaluating improved methods and systems for communication of outcomes

information among significant stakeholders; (3) automatic log file performance data-capturing for AT outcomes assessment; and (4) development of new or improved AT outcomes tools.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-33

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

North Carolina

Consortium for Assistive Technology Outcomes Research (CATOR) II

Duke University

Division of Speech Pathology and Audiology

DUMC-3888

Durham, NC 27710

frank.deruyter@duke.edu

www.AToutcomes.com

Principal Investigator: Frank DeRuyter, PhD

Public Contact: 919/684-6271 (V); 919/684-6626 (TTY); Fax: 919/681-9984

Project Number: H133A060062

Start Date: January 01, 2007

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $449,994; FY 07 $449,995

Abstract: The Consortium for Assistive Technology Outcomes Research (CATOR-II), in collaboration

with the RRTC on Measuring Rehabilitation Outcomes and Effectiveness and several other NIDRR-funded

programs, enhances understanding of the impact of AT on the lives of people with disabilities by conducting

a research project that systematically applies state-of-the-science measures of AT interventions, outcomes,

and data collections mechanisms. The purpose of this project is to improve the AT field’s ability to measure

the impact of AT on the lives of people with mobility disabilities, with the potential to supplement or supplant

the instruments and techniques available to researchers, service providers, and policy makers. Project R-1

produces a state-of-the-science instrument for measuring outcomes for mobility AT devices based on

applications of item response theory and computer adaptive testing (CAT). Project R-2 produces a stateof-the-science instrument for specifying and measuring key aspects of mobility AT treatment interventions,

along with two consensually endorsed classifications of mobility devices and services. Together, these

products provide a foundation to improve reporting of interventions in research publications and assess

treatment fidelity in AT outcome studies. Drawing on the advanced measures emanating from projects R-1

and R-2, Project R-3 uses an experimentally controlled design to examine the conditions under which a

change in assistance strategy, induced by a mobility AT intervention, enhances the functional performance,

well-being, and device satisfaction of stroke survivors and decreases the assistance being received from

cohabitating caregivers.
3-34 NIDRR Program Directory FY 2006 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Oregon

Think and Link: Email for Individuals with Cognitive Disabilities

Western Oregon University

Teaching Research Division

99 West Tenth Avenue, Suite 370

Eugene, OR 97401

info@coglink.com

www.think-and-link.org

www.coglink.org

Principal Investigator: McKay Moore Sohlberg, PhD

Public Contact: 541/346-2586; Fax: 541/346-0599

Project Number: H133A010610

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $300,000; FY 02 $300,000; FY 03 $300,000; FY 04 $300,000; FY 05

$300,000; FY 06 $0 (No-cost extension through 3/31/2007)

Abstract: This project improves the access and use of electronic mail by individuals with cognitive disabilities resulting from brain injury. The Internet’s email component has created an unparalleled communication

network linking people for commercial and social purposes. It holds tremendous potential for lessening

social isolation, one of the most pervasive and devastating consequences of brain injury. However, virtually

nothing is known about what modifications are required to provide successful access to this technology to

people with cognitive disabilities that result from brain injury. In addition, the diverse cognitive impairments

confronting people with brain injury render an enormous challenge to the development of assistive devices

that could improve accessibility to email. Activities of this project include: (1) identifying the wide range of

issues critical for long-term, effective use of email by people with cognitive disabilities; (2) developing a

diagnostic protocol, a cyber-evaluation of the potential of a person with cognitive disabilities to use electronic communication; (3) developing a software toolkit that allows caregivers, support persons, and

professionals to fit an individual user with a customized email system; (4) creating a virtual clinic that supports widespread dissemination and use of these materials by cognitive rehabilitation professionals. An

open-source software site on the web allows other worldwide researchers to use the new tools and contribute tools of their own.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-35

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Pennsylvania

Information Technology for Independence: Community-Based Research

University of Pittsburgh

6026 Forbes Tower

Pittsburgh, PA 15260

parmanto@pitt.edu

www.pitt.edu/~curbcut

Principal Investigator: Bambang Parmanto, PhD

Public Contact: 412/383-6649; Fax: 412/383-6655

Project Number: H133A021916

Start Date: January 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $299,945; FY 03 $299,534; FY 04 $299,945; FY 05 $299,384; FY 06

$298,903

Abstract: This project explores methods and technologies to mitigate barriers to computer and Internet use

encountered by people with visual impairments. These barriers include limited computer ownership and

Internet availability, difficulty in obtaining and using accommodations for functional limitations (including cost

issues), psychological barriers arising from inadequate coaching or mentoring, and the limited accessibility of

most websites to individuals with visual impairments. Accessibility can be promoted through computer

ownership, Internet availability, assistive technologies, and knowledgeably-staffed public computer stations,

such as at independent living centers. Evaluation of these barriers and of identified accommodation strategies

is the first research task of this project. Preceded by focus groups and a widely-disseminated survey, the

match of correct assistive device(s) to the individual and appropriate coaching and mentoring will be tested

at community-based computer laboratories. The second research task is to develop and evaluate a new

approach to Internet accessibility — a Gateway server. This Gateway transforms the contents of any

website, whatever its level of accessibility, into the most accessible format for each Internet user, as Google

does for personal digital assistant (PDA) users. The Gateway promotes Internet accessibility without

requiring that commercial websites follow promulgated guidelines or standards for users with disabilities,

something that web developers often seem to resist. Additionally, this project develops innovative metrics

that enable the most rigorous approach to the analysis of Internet accessibility and is conducting large-scale

studies of different topical categories of websites to measure progress in accessibility over time and identify

the impact (s) of new technologies.
3-36 NIDRR Program Directory FY 2006 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

ACCESS: Assisted Cognition in Community, Employment, and Support

Settings

University of Washington

Center on Human Development and Disability

Box 357920

Seattle, WA 98195

pabrown@u.washington.edu

cognitivetech.washington.edu

Principal Investigator: Kurt Johnson, PhD 206/543-3677

Public Contact: Pat Brown, EdD 206/616-3714; Fax: 206/543-4779

Project Number: H133A031739

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $297,127; FY 04 $299,171; FY 05 $298,764; FY 06 $299,949

Abstract: Project ACCESS investigates the use of assisted cognition as a tool for caregivers in supporting

individuals with disabilities in living, working, and fully participating in community activities. The use of

assisted cognition devices has the potential to increase an individual’s independence and decrease their

reliance on the family/friend/caregiver network and community support staff. Devices in development include

the activity compass and the ADL Prompter. The activity compass meshes several technologies (Palm Pilot,

GPS receiver, and wireless modem). Over time, the device learns a user’s typical daily routines, monitors

for variations, and then decides whether a prompt is necessary when a routine is unexpectedly changed. The

ADL prompter monitors data collected by sensors embedded in a living or work environment. Using

artificial intelligence software, the data from these sensors are interpreted and decisions made based upon

the needs of the user. Although initially designed for people with Alzheimer’s, these devices have applications as support tools for caregivers and people with disabilities since they potentially support “distributed

caregiving” wherein the caregiver or family member monitors, prompts, and/or supports from a distance.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-37

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Wisconsin

ATOMS Project: Assistive Technology Outcomes Measurement System

University of Wisconsin/Milwaukee

Rehabilitation Research Design and Disability Center

College of Health Sciences

P.O. Box 413

Milwaukee, WI 53201-0413

atoms@uwm.edu

www.atoms.uwm.edu

Principal Investigator: Roger O. Smith, PhD

Public Contact: 414/229-6803 (V); 414/229-5628 (TTY); Fax: 414/229-6843

Project Number: H133A010403

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $450,000; FY 02 $450,000; FY 03 $450,000; FY 04 $450,000; FY 05

$450,000; FY 06 $0 (No-cost extension through 12/31/2006).

Abstract: The ATOMS Project (Assistive Technology Outcomes Measurement System) targets the definition and pre-development phases of a next-generation AT outcomes measurement system. A comprehensive

needs assessment, prototype instrument development, and consensus building activities frame an integrated

set of research and development activities to address urgent needs to identify components of a future AT

outcomes measurement system. In addition, these activities generate information about the relationships of

AT outcomes factors that produce a better understanding of AT use and abandonment.
3-38 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Interference in Hearing Aids from Digital Wireless Telephones: Improved

Predictive Methods

Advanced Hearing Concepts

998 Sea Eagle Loop

P.O. Box 1166

Bodega Bay, CA 94923-1166

harrylevitt@earthlink.net

Principal Investigator: Harry Levitt, PhD 707/875-2289

Public Contact: 707/875-2289; Fax: 707/875-2294

Project Number: H133G050228

Start Date: November 01, 2005

Length: 36 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $149,200; FY 06 $149,200

Abstract: This project conducts experiments to develop a basic understanding of electromagnetic (EM)

interference and to develop ways of predicting its effects on speech perception and the usability of cellular

telephones by hearing aid wearers. Audio input signal to the hearing aid, the EM signal being picked by the

hearing aid, and the distorted speech signal in the ear canal are all monitored simultaneously with the subjective measurements and stored digitally in a computer for subsequent analysis. Based on these measurements,

researchers predict how the EM interference affects the intelligibility of amplified speech. The results of this

study benefit not only consumers in selecting a hearing aid and/or cellular telephone, they also provide

industry with the basic theoretical underpinnings needed to allow for the development of improved wireless

telephones (and other digital wireless devices) that produce substantially less interference in hearing aids,

thereby increasing accessibility of modern digital communication systems for people with hearing loss.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-39

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Accessible Location Information Delivered via GPS cell phone for People

with Visual Impairments

Sendero Group, LLC

1118 Maple Lane

Davis, CA 95616-1723

mikemay@senderogroup.com

www.wayfinding.org

Principal Investigator: Michael May

Public Contact: 530/757-6800; Fax: 530/757-6830

Project Number: H133G060036

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 06 $149,435

Abstract: This project develops an accessible GPS cell phone, which provides critical information about

businesses, addresses, distances, and routes, thereby greatly augmenting the personal mobility of a traveler

who is blind visually impaired. Specific activities include integrating the existing accessible GPS innovations

with “smart” cell phone technology. The marriage of GPS and cell phones exists in the general market but it

is screen based with a graphical interface rendering it completely inaccessible for blind and visually impaired

individuals. Developing an interface to meet the needs of the nation’s blind and visually impaired travelers,

i.e. translating the visual information into spoken text, is a central focus of this project. A consortium of three

organizations with investigators from research centers and industry collaborate on this project. The consortium systematically evaluates project activities. Dissemination via various avenues includes conferences,

webcasts/online discussions, end user lists, various media outlets, and presentations. The end result of this

project is to provide a commercially available talking GPS cell phone.
3-40 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Sound Localization with Multichannel Compression Hearing Aids

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

helen@ski.org

www.ski.org

Principal Investigator: Helen J. Simon, PhD

Public Contact: 415/345-2071; Fax: 415/345-8455

Project Number: H133G030118

Start Date: September 01, 2003

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06 $0 (No-cost extension

through 8/31/2007)

Abstract: The primary objective of this research is to evaluate and compare wide dynamic range multichannel compression (WDRMCC) and linear hearing aids on localization and speech perception. To date there

have been no studies of auditory localization using WDRMCC. The research uses innovative strategies and

an extension of previous work, by taking WDRMCC outside of the laboratory to evaluate it in the complexities of the normal auditory environment and looking at effects of hearing aid experience on the ability to

localize sounds. In addition to examining the general efficacy of a new wearable WDRMCC hearing aid in

localization tasks, the research objectives include detailed study of the specific changes that occur in sound

localization with WDRMCC and linear amplification as a function of time and the differences between the

two platforms. The localization testing is complete and the data is being analyzed for a publication.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-41

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

“Cross Watch”: Development of an Intersection Information System for

Blind Travelers Based on Computer Vision

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

www.ski.org/Rehab

Principal Investigator: John A. Brabyn, PhD 415/345-2110

Public Contact: Deborah Gilden, PhD 415/345-2000; Fax: 415/345-8455

Project Number: H133G030080

Start Date: September 15, 2003

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06 $0 (No-cost extension

through 9/14/2007)

Abstract: The goal of this project is to develop and evaluate a system, based on computer vision technology, to give a blind traveler more information about intersections than is obtainable through conventional

orientation and mobility techniques. Urban intersections (the most dangerous parts of a blind person’s travel,

and the places where most accidents happen) are becoming increasingly complex, making safe crossing ever

more difficult. The project develops a system named “Cross Watch” to help the blind person find the

crosswalk, learn about the shape and nature of the intersection, find the pedestrian signal button, determine

when the “walk” light is on, and alert him/her to any veering out of the crosswalk while crossing. The

primary input to the system is images from a small camera carried like a pendant around the user’s neck,

analyzed by software to extract the desired information. The specific goals are to: (1) gather a database of

real images taken by blind persons at a variety of different kinds of intersections; (2) develop algorithms to

process the images and extract the desired information; (3) incorporate the camera and algorithms in a

portable prototype; and (4) conduct user testing to establish design parameters and human interface optimization. The software is designed to be capable of integration as a module for the “SignFinder” system

already in development for finding printed signs in the camera images and reading them aloud to the user.

The combined system provides a quantum leap forward in independent travel for blind persons.
3-42 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Efficacy of a Custom-fitting Cognitive Orthotic with Automatic Planning

and Cueing Assistance

Santa Clara Valley Medical Center

751 South Bascom Avenue

San Jose, CA 95128

jerry.wright@hhs.co.scl.ca.us

www.tbi-sci.org

Principal Investigator: Jeffrey Englander, MD; Tamara Bushnik, PhD 408/885-2000 (Englander); 408/

793-6446 (Bushnik)

Public Contact: Jerry Wright 408/793-6433; Fax: 408/793-6434

Project Number: H133G040145

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 04 $149,994; FY 05 $149,963; FY 06 $149,967

Abstract: Executive control dysfunction can be the biggest challenge on the recovery path toward social

and vocational independence for individuals with cognitive impairment. This project demonstrates the

effectiveness of a cognitive aid, the Planning and Execution Assistant and Trainer (PEAT). PEAT not only

provides the cueing and organization functions that many current cognitive orthoses contain, but it possesses

the algorithms to monitor the progress of task execution. PEAT automatically generates schedules, detects

and corrects schedule errors, cues the user to start and stop tasks, monitors performance, and adjusts to

changes as they arise. As such, PEAT is a cognitive orthotic that has great potential for improving outcomes

across multiple functional domains for people with cognitive impairments. Individuals with executive dysfunction 2° to traumatic or acquired brain injury, as well as other disease processes, receive either the PEAT

device or standard cognitive aids/strategies. Each subject undergoes three assessments: baseline (before

study initiation), 3, and 6 months after study enrollment.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-43

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Colorado

Development of an Assistive Technology Outcomes Measurement System

Utilizing the International Classification of Functioning (ICIDH-2/ICF)

University of Colorado Health Sciences Center

Assistive Technology Partners

1245 East Colfax Avenue, Suite 200

Denver, CO 80218

cathy.bodine@uchsc.edu

www.uchsc.edu/atp

Principal Investigator: Cathy Bodine

Public Contact: 303/315-1281; Fax: 303/837-1208

Project Number: H133G030187

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $149,939; FY 04 $149,933; FY 05 $149,996; FY 06 $0 (No-cost extension

through 9/30/2007)

Abstract: This project furthers the development of a secure, Health Insurance Privacy and Accountability

Act of 1996 (HIPAA) compliant, multi-site, web-based assistive technology (AT) outcomes system designed to capture data that enables the measurement of the impact of AT devices and services for children

and adults with disabilities. The project results in the design and development of a working prototype

complete with instructional support for users. The project is designed for easy addition of data fields to

support the ever-evolving schema for outcomes assessment in AT. The use of the International Classification

of Functioning, Disability and Health (ICIDH-2/ICF) as the framework for development builds on initial

pilot work already completed by faculty of Assistive Technology Partners, University of Colorado Health

Sciences Center, and collaboration with two NIDRR funded national projects focused on AT outcomes

development (ATOMS/CATOR). Information gained leads to maximizing the full inclusion and integration

into society, employment, independent living, family support, and economic and social self-sufficiency of

individuals with disabilities, especially individuals with the most severe disabilities; and will lead to improved

information and research on the effectiveness of AT devices and evidence-based practices.
3-44 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Delaware

Enhancing AAC Communication through Improved Access to Fringe

Vocabulary Words

University of Delaware

Computer and Information Sciences Department

103 Smith Hall

Newark, DE 19716

mccoy@cis.udel.edu

Principal Investigator: Kathleen F. McCoy, PhD

Public Contact: 302/831-1956; Fax: 302/831-4091

Project Number: H133G040051

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $149,993; FY 05 $149,996; FY 06 $149,986

Abstract: This project examines “fringe vocabulary” access, the means by which an Augmentative and

Alternative Communication (AAC) device user accesses the substantially larger set of words needed in

communication. AAC devices typically employ some mechanisms to enhance access to the most frequently

used words or “core vocabulary.” However, much communication also involves accessing words that are

not in this core. One method of accessing fringe vocabulary is word prediction, which can offer a choice of

completed words based on the user’s selection of one or more initial word letters. This project seeks to

optimize word prediction for fringe vocabulary. An important factor in this effort is the implementation of

context-aware word prediction. Such a system automatically adapts its word predictions in response to

changes in the user’s actions and environment. For example, different fringe vocabulary items may be

predicted depending on the user’s geographic location, conversational topic, and identity of his/her conversational partner. Researchers study and implement word prediction methods based on observations of

patterns of behavior exhibited by users in similar situations.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-45

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

District of Columbia

Smart Over-Ground Body-Weight Support Gait Training System

National Rehabilitation Hospital

102 Irving Street, NW, Room 1060

Washington, DC 20010

hidler@cua.edu

cabrr.cua.edu

Principal Investigator: Joseph M. Hidler, PhD

Public Contact: 202/877-1892; Fax: 202/726-7521

Project Number: H133G050259

Start Date: November 01, 2005

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $149,817; FY 06 $148,721

Abstract: The goal of this project is to build and test a new body-weight support system that allows

individuals of different body weight and varying levels of walking ability to safely practice over-ground gait

training. In the acute stages of many neurological injuries such as stroke, spinal cord injury, or traumatic

brain injury, individuals often exhibit highly unstable walking patterns and poor endurance, making it difficult

to safely practice gait for both the patient and therapist. Because of this, rehabilitation centers move overground gait training to the treadmill where bodyweight support systems can help minimize falls while at the

same time raising the intensity of the training. Since a primary goal of all individuals with walking impairments

is to walk in their homes and in the community rather than on a treadmill, it is imperative that therapeutic

interventions targeting walking involve over-ground gait training. This device allows therapists to train

patients early in their recovery stages in a safe, controlled manner, and thus enhance gains in over-ground

walking ability.
3-46 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

District of Columbia

Accessible Digital Radio Broadcast Services

National Public Radio

635 Massachusetts Avenue NW

Washington, DC 20001-3753

Principal Investigator: Mike Starling

Public Contact: 202/513-2484

Project Number: H133G060187

Start Date: October 01, 2006

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 06 $150,000

Abstract: In this project, National Public Radio (NPR) and the WGBH National Center for Accessible

Media (NCAM) prototype, field test, and assess the most appropriate technologies, service models, and

operational techniques in the accessible design of mass-market digital radio services to better serve consumers with sensory disabilities. This work produces best practice demonstrations and service options with

strong prospects for mass-market adoption within digital radio services and receivers, options that model

how digital radio can provide: mainstreamed digital reading radio services; live video description synchronized to broadcast; buffering for rewind/replay/catch-up to aid comprehensibility; accessible controls,

displays, and menu options on digital radio receivers; and caption displays of audio on digital radio receivers

or ancillary displays. Best practice demonstrations and service options benefit from iterative and comprehensive user evaluations led by research experts. Furthermore, NPR and NCAM have extensive collaborative relationships within the industry that ensure widespread impact on products and services available to

people with sensory disabilities.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-47

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

District of Columbia

An Automatic Fitting Algorithm for Cochlear Implant

Gallaudet University

Department of Hearing, Speech, and Language Sciences

800 Florida Avenue, NE

Washington, DC 20002

matthew.bakke@gallaudet.edu

www.hearingresearch.org

Principal Investigator: Matthew H. Bakke, PhD

Public Contact: 202/651-5335 (V/TTY); Fax: 202/651-5324

Project Number: H133G060065

Start Date: October 01, 2006

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 06 $146,562

Abstract: The purpose of this study is to design and evaluate an automatic cochlear implant fitting algorithm

based on a paired comparison adaptive approach to guide audiologists in choosing the best frequency

allocation for the individual client. Frequency allocation can impact speech recognition abilities and in turn

communication. This work entails a systematic search for an optimum frequency allocation using a modified

Simplex procedure. This study consists of three experiments. One is the discrimination of frequency analysis

band wherein minimally detectable differences in frequency shifts along the electrode array are identified. In

the second experiment, subjects are computer-guided to search for an optimal frequency allocation among

cells in a matrix, with the results from experiment one defining the cell content. The third experiment, the

speech battery test, consists of speech perception experiments with the new map using nonsense syllable,

phoneme, and sentence stimuli. Experiment 2 and experiment 3 are recursively conducted until the results

converge with up to six sessions per subject required to finish the experiment. During the subject’s first and

last visits, he/she completes the Communication Profile for the Hearing Impaired (CPHI) and a questionnaire similar to the Abbreviated Profile of Hearing Aid Benefit (APHAB). Four normal hearing native English

speakers evaluate the experimental procedure and the speech processing algorithm. Fifteen post-linguistically deafened Nucleus 24 cochlear implant users complete the study.
3-48 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

Analyzing Universal Design Resource Needs for Practitioners in Industry

and Government

Georgia Institute of Technology

Industrial and Systems Engineering

755 Ferst Drive

Atlanta, GA 30332-0205

jacko@isye.gatech.edu

Principal Investigator: Julie A. Jacko, PhD

Public Contact: 404/894-2342; Fax: 404/894-2301

Project Number: H133G040151

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 04 $149,391; FY 05 $149,754; FY 06 $149,411

Abstract: This project draws from past human factors research which has examined the quality of design

guidelines, the design process in general, and needs/task analyses to support design-tool creation. Lessons

from the human factors field are considered in relation to studies of universal design practice in industry, and

needs analysis to support universal design resource creation. The target population for this project is people

who utilize universal design resources in industry and government. The objective of the research is to

understand and document actions/behaviors of practitioners involved in design or procurement activities in

relation to their use of universal design resources. A systems analysis approach has been employed in the

design of research activities. The relevant elements of the system are examined through observation and

measurement. Four sequential research activities are: (1) an analysis of universal design guidance in the

context of practitioner use employing heuristic evaluation, survey, and interview methods; (2) a field-based

analysis of supply-chain stakeholder activities, which conducts a needs and task analysis using various

contextual inquiry methods; (3) controlled laboratory-based usability studies of resource use during universal

design projects; and (4) a summative resources and training effects study, which examines how professionals

who are new to universal design concepts approach design, and succeed or fail depending on the level of

tuition and the level of resource access that they have during design activities.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-49

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

Inclusive Indoor Play

Georgia Tech Research Corporation

Georgia Institute of Technology, College of Architecture

505 Tenth Street

Atlanta, GA 30332

abir.mullick@coa.gatech.edu

Principal Investigator: Abir Mullick

Public Contact: 404/385-7210

Project Number: H133G040324

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000

Abstract: The purpose of this project is to research indoor play environments, develop universal design

play guidelines, and design models of play environments that are safe and accessible to all children. This

project: (1) conducts basic research and develops universal design guidelines for indoor play; (2) designs,

develops, and tests models of inclusive indoor play environments that promote the highest level of safety,

usability, accessibility, and social interaction; and (3) constructs and tests a working prototype of an indoor

play environment that demonstrates highest level of access for all children. It researches play and the play

environment through literature review, existing products, existing play environments, focus group interviews

with participants, expert consultations, children’s play designs, and testing of full-scale simulated play

environments. The second year of this project focuses on development of design concepts, construction of

refined design in full scale, and testing with users. The final year of this project is dedicated to prototype

construction and testing.
3-50 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Selective Dynamic Strength Training to Enhance Upper Limb

Coordination Following Stroke

Northwestern University

Department of Physical Therapy and Human Movement Sciences

645 North Michigan Avenue, Suite 1100

Chicago, IL 60611

j-dewald@northwestern.edu

dewaldlab.com/

Principal Investigator: Julius Dewald, PT, PhD

Public Contact: 312/908-6788; Fax: 312/908-0741

Project Number: H133G030143

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $149,998; FY 04 $149,991; FY 05 $149,992; FY 06 $0 (No-cost extension

through 9/30/2007)

Abstract: This study investigates the use of a novel selective dynamic strengthening protocol, which incorporates a two-joint robotic device to overcome gravity induced abnormal movement synergies following

hemiparetic stroke. The specific objectives are the evaluation and demonstration of the usefulness and

effectiveness of this selective dynamic robot-supported training regime for enhancement of quality of life of

stroke survivors. The effects of the dynamic training regime on functional arm movements are being investigated in 2 groups of 20 subjects with chronic hemiparetic stroke. The control group follows an 8-week

conventional upper extremity strengthening protocol consisting of shoulder abduction/flexion and elbow

extension exercises. This conventional protocol represents an adapted exercise program is available for

people with chronic stroke (4.5 million) who no longer receive formal physical therapy due to a plateau in

functional restoration. The experimental group follows a novel robot-supported training regime, which also

strengthens subjects with chronic stroke but emphasizes performance of rapid reaching movements while

increasing active support of their arm. This enables the subject to progressively deviate from their abnormal

torque synergies. The evaluation and training paradigm provides quantitative outcome measures, which can

be used to reliably track a patient’s progress using technology that is easy to implement with no risk of

injury. The long-term goals of this study are the technological development and implementation of a simple,

user-friendly, robot-supported therapeutic intervention accessible to consumers in both in- and out-patient

clinics.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-51

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Computer Treatment for Aphasia: Evaluating Efficacy and Treatment

Intensity

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1353A

Chicago, IL 60611

lcherney@ric.org

Principal Investigator: Leora R. Cherney, PhD

Public Contact: 312/238-1117; Fax: 312/238-1219

Project Number: H133G040269

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $149,978; FY 05 $149,808; FY 06 $149,933

Abstract: This project implements an innovative computerized treatment program for individuals with

chronic aphasia, evaluates its effectiveness, and assesses the impact of treatment intensity on outcome. The

treatment, Oral Reading for Language in Aphasia (ORLA), uses state-of-the-art computer technology that

allows the individual with aphasia to read aloud, and ultimately speak, sentences at the same time as the

words are produced in visible speech by an animated agent. The treatment is based on a theoretical framework that incorporates two lines of work: the neuropsychological models of reading and observationexecution-matching. Individuals with chronic aphasia are randomized to one of three treatment groups: high

intensity computer treatment (10 hours per week); low intensity computer treatment (4 hours per week);

and a control condition in which subjects participate in non-language computer activities for 4 hours per

week. For all groups, treatment continues for six weeks. Language and communication skills are evaluated

pre-treatment, immediately post-treatment, and at 6 and 12 weeks after the end of treatment. The primary

outcome measure is the Aphasia Quotient of the Western Aphasia Battery. Secondary outcome measures

consider the ICFDH-2 categories of body structure/function, activity and participation and include a variety

of standard aphasia tests as well as quality of life indices. Aphasia is a chronic condition that requires longterm treatment of the communication disorder to ensure that individuals can participate in a full range of

vocational, recreational and social activities.
3-52 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Visual Guidance to Improve Stepping Behavior Post-Stroke

Northwestern University

645 North Michigan Avenue, Suite 1100

Chicago, IL 60611

Principal Investigator: David A. Brown, PhD

Public Contact: 312/908-0976; Fax: 312/908-0741

Project Number: H133G050132

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $149,996; FY 06 $149,828

Abstract: Impaired walking ability is a major obstacle to quality of life for stroke survivors, and recovery of

independent walking is among the most important goals for individuals post-stroke. Physical therapists use

physical guidance of the limb during body-weight supported treadmill training to work toward these goals,

but clinical experience suggests that these techniques have limited effectiveness because when the physical

guidance is removed, the stepping behavior, although somewhat improved, reverts to a preferred stepping

pattern. This project introduces a novel simulated object stepping paradigm to improve walking poststroke

by providing the added benefits of visual guidance during body-weight supported treadmill training. Consumers view simulated objects through a pair of goggles and are instructed to step over challenging objects

while subjected to body-weight supported treadmill training. The dimensions of the object are adjusted so

that successful stepping is associated with an improved and more functional step length and toe clearance

leading to improved gait speed and lowered risk for falls.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-53

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Web-Based Treatment for Aphasia

Rehabilitation Institute Research Corporation

Center for Aphasia Research

345 East Superior Street, Room 1353A

Chicago, IL 60611

lcherney@ric.org

Principal Investigator: Leora R. Cherney, PhD

Public Contact: 312/238-1117; Fax: 312/238-1219

Project Number: H133G060055

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $146,316

Abstract: This project conducts a randomized clinical trial to develop and implement an innovative, broadband, web-based treatment program for individuals with chronic aphasia, and evaluates its efficacy and

cost-effectiveness. The treatment, Oral Reading for Language in Aphasia (ORLA), is based on a theoretical

framework that incorporates two lines of work: the neuropsychological models of reading and observationexecution-matching. The treatment has been computerized and the current version of ORLA uses state-ofthe-art virtual therapist technology that allows the individual with aphasia to read aloud, and ultimately

speak, sentences at the same time as the words are produced by a perceptive, life-like, animated computer

agent, using visible speech. In this clinical trial, ORLA treatment is delivered via the Internet and outcomes

are compared to a placebo computer treatment. Twenty-five individuals with chronic aphasia (at least 12

months post onset) are randomized to one of two groups: oral reading treatment group and a control group

in which subjects participate in non-language computer activities. Both groups practice for nine hours per

week and treatment continues for a six-week period of time. Language and communication skills are

evaluated pretreatment, immediately post-treatment, and at six weeks after the end of treatment to assess

maintenance effects. The primary outcome measure is the Aphasia Quotient of the Western Aphasia Battery.

Additionally, secondary outcome measures have been selected with consideration of the ICFDH-2 categories of body structure/function, activity, and participation and include a variety of standard aphasia tests as

well as quality of life indices.
3-54 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Maryland

Optimized Hands-Free Speech Recognition

UMBC

Information Systems Department

1000 Hilltop Circle

Baltimore, MD 21250

asears@umbc.edu

Principal Investigator: Andrew Sears, PhD

Public Contact: 410/455-3883; Fax: 410/455-1531

Project Number: H133G050354

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 05 $149,882; FY 06 $149,997

Abstract: The goal of this project is to take the collected hands-free speech recognition scientific knowledge and interface solutions, which have been individually developed and proven, and incorporate those into

a commercially available user interface software product. The project follows an iterative user centered

design process whose three main phases correspond roughly to the three years of the project. In phase 1,

past research results are incorporated into a prototype design, which undergoes usability testing in the lab.

In phase 2, an “alpha” version of the product is placed in a small number of users’ homes and/or offices,

where they use the prototype for up to six months and keep a diary of their experiences. In phase 3, a

“beta” version of the software is tested by a larger number of users over a period of six months. In this trial

the users are subject to surveys regarding ease-of-use, and they and the developers participate in an open

online discussion/feedback forum for users. The end of phase 3 includes a final refinement of the product

and evaluations of the performance of the new software product, and (for marketing purposes) a comparison of performance of the hands-free implementations of speech recognition software commercially available at that time. This project culminates with “Version 1.0” which will be made available to the general

public.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-55

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Access to Digital Cinema Systems

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

Principal Investigator: Bradley C. Botkin 617/300-3902

Public Contact: Mary Watkins 617/300-3700; Fax: 617/300-1020

Project Number: H133G030104

Start Date: September 01, 2003

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06 $0 (No-cost extension

through 6/21/2007)

Abstract: This project builds on WGHB National Center for Accessible Media (NCAM) experience and

successes in developing and proliferating MoPix technologies to make digital cinema accessible to people

with sensory disabilities. MoPix systems enable the 34 million Americans with hearing or vision loss to enjoy

first-run films with their friends and families. As in all NCAM standards initiatives, open specifications are

proposed that technology developers can use to enable myriad display options, including, but not limited to,

MoPix systems. Project goals are to: (1) Work with standards organizations to ensure inclusion of captions

and audio narration in industry specifications for packaging, identification, transport, retrieval and display of

digital cinema content; (2) develop solutions and prototypes to support delivery and display of caption and

description files, both in current first-generation and future d-cinema systems; and (3) promote review of

project solutions and proposed standards through dissemination and high-profile demonstrations, and

support implementation by digital cinema systems vendors.
3-56 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Speech Solutions for Next Generation Media Centers

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

Mary_Watkins@wgbh.org

ncam.wgbh.org

Principal Investigator: Madeleine Rothberg 617/300-2492

Public Contact: Mary Watkins 617/300-3700; Fax: 617/300-1035

Project Number: H133G040143

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000

Abstract: This project is developing a fully operational home media center with voice input and output

capabilities enabled via keyboard and remote control, based on open source technologies. Project activities

include: Creation of an accessible Linux-based home media center; publication of source code and specifications for open source media center; speech interface solutions enabled via keyboard and remote control;

demonstration model of end user control and navigation of open source media platform via a PDA with

Panasonic’s small footprint speech interface; publication of end-user interface research; and a final report

that details the impact of project solutions and publications. A demonstration model of a small footprint

speech interface for this open source media center that previews how emerging speech technologies could

be used in new handheld products in development by industry is in development from Panasonic Digital

Networking Laboratory. American Foundation for the Blind conducts comprehensive end-user evaluations

that document how blind and low vision users interact with and utilize the speech interface offered by both

project solutions.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-57

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Access to Locally Televised On-Screen Information: Auditory Messaging

and Captions During Emergency Broadcasts

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134-1008

access@wgbh.org

www.wgbh.org/ncam

Principal Investigator: Geoff Freed 617/300-3700

Public Contact: Mary Watkins 617/300-3700; Fax: 617/300-1020

Project Number: H133G050278

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 05 $150,000; FY 06 $150,000

Abstract: This project explores and prototypes digital television (DTV) solutions that enable local television

stations to send messages, warnings, and alerts that meet the communication needs of people with sensory

disabilities. Specifically, NCAM researches and develops systems and procedures that enable real-time

processing and conversion of on-screen text crawls into speech output. Utilizing off-the-shelf speech

synthesizers, WGBH works with broadcast stations to prototype methods of processing text entered into

broadcast graphics systems into speech output that can then be made available via the secondary audio

program (SAP) channel or auxiliary DTV audio channels. The project also develops systems and procedures that address display conflicts between captions and on-screen graphics by developing methods of

tagging and prioritizing text and graphics messages within automated display systems.
3-58 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Making In-Flight Communications and Entertainment Accessible

WGBH Educational Foundation

WGBH National Center for Accessible Media (NCAM)

125 Western Avenue

Boston, MA 02134

ncam@wgbh.org

ncam.wgbh.org

Principal Investigator: Larry Goldberg 617/300-3722

Public Contact: Mary Watkins 617/300-3700; Fax: 617/300-1035

Project Number: H133G050254

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $150,000; FY 06 $150,000

Abstract: This project researches barriers and develops solutions that can make inflight communication and

entertainment systems (IFE) accessible to people with sensory disabilities. Major project activities are to:

(1) Research technical solutions, procedures, and practices required to infuse access considerations into

inflight hardware, digital content management systems, interactive and display systems, connectivity, and

content; (2) develop a demonstration model using a state-of-the-art IFE system that prototypes inflight

system support of user-selectable captions, audio description, and talking menus; (3) participate in World

Airline Entertainment Association technical committees and working groups and promote the adoption/

inclusion of standard accessibility metadata models into new and existing standards developed by those

groups; (4) publish a white paper outlining the functional requirements of an accessible IFE system; and (5)

promote review of demonstration model and proposed specifications through dissemination and high-profile

demonstrations within industry, government, and the disability community.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-59

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Minimal Classroom Requirements for Optimal Acoustic Access to Speech

by Children with and Without Hearing Loss

Clarke School for the Deaf

47 Round Hill Road

Northampton, MA 01060-2199

figlehart@clarkeschool.org

Principal Investigator: Frank Iglehart, PhD

Public Contact: 413/584-3450; Fax: 413/582-1187

Project Number: H133G060116

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 06 $68,869

Abstract: The purpose of this project is to measure the effects of classroom noise and reverberation on

speech perception by children with varying degrees of hearing loss and of different ages. The effects of

speech-to-noise ratio (0 dBA S/N, +10 dBA S/N, and +20 dBA S/N) and reverberation (RT = 0.25, 0.50

and 1.0s) on sentence-level speech perception are measured as functions of age (5-16 years) and degree of

hearing loss (mild to profound). Normative data is also collected, as a function of age, on children with

typical hearing. This project addresses several questions: (1) What limits on noise and reverberation are

required for optimal speech perception by children with hearing loss? (2) Can the need for access to speech

among children with different degrees of hearing loss be met with a single set of criteria for classroom

acoustics? (3) To what extent do these criteria vary with age among children with typical hearing and those

with hearing loss?
3-60 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Jersey

Development of an Intelligent Patient Lift and Transfer Device

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

tedwards@kmrrec.org

www.kmrrec.org/rehabengineering

Principal Investigator: W. Thomas Edwards, PhD

Public Contact: 973/324-3539; Fax: 973/243-6984

Project Number: H133G040183

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000

Abstract: The objective of the project is to develop the Intelligent Patient Lift (IPL) and Transfer Device

based upon an advanced state-of-the-art technology that addresses present shortcomings: complexity and

safety, cost and availability, level of effort for caregivers, and the number of caregivers needed to complete a

transfer. This innovative system incorporates a recently patented concept proven in other lifting applications

and developed by project collaborator Yobotics Incorporated. Based on needs identified at KMRRECKIR, researchers develop and demonstrate refinements of the Patient Lifting frame and sling. The goal is to

introduce an intelligent interface that provides both natural and comfortable interactions between the patient/

user and the caregiver. The novel features incorporated in the IPL introduce a more intuitive control of the

system and improve the quality of user-caregiver interactions by reducing the level of effort and complexity.

The new IPL device is demonstrated and evaluated in an active rehabilitation setting. This fundamental lifting

technology can be extended to other applications (such as vehicle entry and homecare) to benefit the

majority of those with mobility disabilities.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-61

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Inclusive Indoor Play

State University of New York (SUNY)/Buffalo

377 Hayes Hall

Buffalo, NY 14214

amullick@ap.buffalo.edu

Principal Investigator: Abir Mullick

Public Contact: 716/829-3485, ext. 322; Fax: 716/829-3861

Project Number: H133G040259

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000

Abstract: The purpose of this project is to research indoor play environments, develop universal design

play guidelines, and design models of play environments that are safe and accessible to all children. This

project: (1) conducts basic research and develops universal design guidelines for indoor play; (2) designs,

develops, and tests models of inclusive indoor play environments that promote the highest level of safety,

usability, accessibility, and social interaction; and (3) constructs and tests a working prototype of an indoor

play environment that demonstrates highest level of access for all children. It researches play and the play

environment through literature review, existing products, existing play environments, focus group interviews

with participants, expert consultations, children’s play designs, and testing of full-scale simulated play

environments. The second year of this project focuses on development of design concepts, construction of

refined design in full scale, and testing with users. The final year of this project is dedicated to prototype

construction and testing.
3-62 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Web-based Student Processes at Community Colleges: Tools for

Ensuring Accessibility

Cornell University

Employment and Disability Institute

School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853

smb23@cornell.edu

edi.cornell.edu

Principal Investigator: Susanne Bruyère, PhD

Public Contact: 607/255-9536 (V); 607/255-2891 (TTY);; Fax: 607/255-2763

Project Number: H133G040255

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000

Abstract: Web-based processes (such as student recruitment, information dissemination, applications,

course registrations, and online coursework) have become increasingly important to the way post-secondary educational institutions communicate and interact with their potential and enrolled student populations.

This project targets Cornell’s information technology (IT) accessibility research and development efforts

specifically to the national community college network. A multiple-prong approach is used to examine the

state of web accessibility in the community college network and identify IT accessibility barriers for students

with disabilities and ways to address them. The project includes a review of selected online application

processes in 30 community colleges. The focus of the Year Two research is a telephone survey across all

community colleges nationally regarding use of web-based/online student recruitment, application, and

registration processes and the colleges’ awareness of web accessibility issues and policies regarding accessibility. The project is a collaborative effort between EDI and Cornell University’s Institute for Community

College Development (ICCD).
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-63

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

The Universal eLearner -- An Innovative Approach for Universal Online

Learning

The American Foundation for the Blind

11 Penn Plaza, Suite 300

New York, NY 10001-2018

luisg@afb.net

www.talkingbookproductions.com/news.asp

Principal Investigator: Lou Gutierrez 212/502-7732

Public Contact: 212/502-7732; Fax: 212/502-7791

Project Number: H133G050113

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $149,518; FY 06 $149,809

Abstract: The purpose of this project is to develop a prototype of the Universal eLearner, an online

educational media platform that addresses the specialized needs of all segments of the student/learner

population, while representing a sound business model for educational publishers. The category of specialized learners encompasses students with learning disabilities, English language learners, students who are

blind or have visual impairments, deaf or hard of hearing students, and students with cognitive disabilities.

The Universal eLearner applies a curriculum-driven approach to making online educational content accessible to the largest possible number of students, including students with learning, cognitive, hearing, and

visual disabilities, as well as English language learners. The American Foundation for the Blind (AFB), in

conjunction with Bridge Multimedia, a New York City-based accessible media company, adapts two

preexisting integrated learning modules produced for general student populations in order to develop two

accessible prototypes: (1) upper-elementary social studies; and (2) upper-elementary science. To ensure

that the finished prototypes support all students with specialized learning challenges, the project uses: (1)

technical assessments based on AFB’s methodology for evaluating universal accessibility and usability of

electronic and information technology products; (2) field testing providing quantitative and qualitative data

on accessibility and usability from the perspectives of students, teachers, and parents; and (3) a representative Advisory Board with a significant role in all phases of the project.
3-64 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

North Carolina

Universal Design of Tactile Exhibits with Touch Activated Descriptive

Audio for Aquariums

RAF Models & Displays

111 Cascade Avenue

Winston-Salem, NC 27127

rafmodels@triad.rr.com

Principal Investigator: Rebecca Fuller 336/722-4250

Public Contact: 336/722-4250

Project Number: H133G060284

Start Date: October 01, 2006

Length: 36 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 06 $138,740

Abstract: The purpose of this project is to develop strategies and technologies that enhance the learning

opportunities at aquariums for people who are blind or low vision (B/LV). The project evaluates current

aquarium exhibit strategies related to an interpretive program and assesses barriers for people who are B/

LV that functionally limit their participation in the critical learning opportunities extended to the general

public. The project identifies and develops universal design best practice strategies and methodologies that

enhance social integration and access to exhibit and interpretive information for persons who are B/LV. The

project develops cost effective technologies to couple a user-directed tactile experience with audio descriptive information for aquarium exhibits. The project emphasizes methodologies that emphasize user involvement by persons who are B/LV in the design and evaluation of prototypical designs for aquariums.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-65

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Development of Intelligent Personal Activity Management and

Prompting Applications for Individuals with Cognitive Disabilities

Eugene Research Institute

99 West 10th Ave, Suite 395

Eugene, OR 97401

tkeating@eugeneresearch.org

www.eugeneresearch.org

Principal Investigator: Thomas Keating, PhD

Public Contact: 541/342-3763; Fax: 541/342-4310

Project Number: H133G050313

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 05 $149,936; FY 06 $149,980

Abstract: This project builds on the successful development of the Picture Planner icon-driven personal

activity management application, supported in part by previous NIDRR funding. One of the conclusions

from field testing of that application was that there is a need for intelligent activity planning and prompting

applications that combine cognitively accessible software design with innovative artificial intelligence approaches to provide smart applications for life management and decision-making. The goal of the present

project is to use a consumer-driven, participatory design process to build on that foundation and develop a

prototype smart planning and prompting software package for implementation on desktop and handheld

platforms. The target population is individuals with significant cognitive disabilities such as mental retardation

and autism. The primary outcome of this project is a field-tested and experimentally evaluated intelligent life

skills management system that enables people with cognitive disabilities to improve their competence at daily

activity management and enhance their community integration.
3-66 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Oregon Project Rehabilitation of Communication Skills in Dementia

Through AAC

Oregon Health and Science University

P.O. Box 574

Portland, OR 92707

friedm@ohsu.edu

Principal Investigator: Melanie Fried-Oken, PhD 503/494-7587

Public Contact: 503/494-2619; Fax: 503/494-6868

Project Number: H133G040176

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000

Abstract: The project increases access to AT by revealing which communication related devices are

appropriate for persons with dementia. The goals of the research are to demonstrate that alternative and

augmentative communication (AAC) use is a promising avenue for improving the lives of adults with dementia and of the families and caregivers who need to communicate with them. The study addresses the input

mode of level of symbol that optimizes AAC device use for persons with moderate dementia. It compares

the effectiveness of abstract symbols (printed words), two-dimensional symbols (colored photos), and

three-dimensional symbols (small objects) in AAC devices. The study also addresses the effect of output

mode on conversational skills of persons with moderate dementia. It compares the use of electronic voiceoutput devices with non-electronic devices.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-67

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Tennessee

Appropriate Directional Hearing Aid Switching in School Age Children

Vanderbilt University School of Medicine

Vanderbilt Bill Wilkerson Center for Otolaryngology and Communication Sciences

1215 21st Avenue South, Room 8310

Nashville, TN 37232-8242

todd.a.ricketts@vanderbilt.edu

Principal Investigator: Todd A. Ricketts, PhD

Public Contact: 615/936-5258; Fax: 615/936-5013

Project Number: H133G060012

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 06 $150,000

Abstract: Some children are being deprived of important speech information as a result of hearing loss and

the high levels of classroom noise that are normally present. Traditional hearing aids are able to counteract

many of the difficulties understanding speech but high levels of classroom ambient noise remain a significant

problem. Recent data have shown significant benefit from directional hearing aids for children across a wide

range of noisy school environments. However, it has also been established that the directional mode maybe

undesirable in other listening situations, necessitating appropriate switching between directional and omnidirectional microphone modes to ensure optimum speech recognition. Unfortunately, it is not known how

often and in what environments the hearing aids microphone mode needs to be switched at school to

maintain optimum speech recognition and whether children can be trained to switch appropriately between

directional and omnidirectional modes. In lieu of appropriate manual switching, it is not known if “state-ofthe-art” automatic microphone-switching hearing aids will switch appropriately in many school environments. An “asymmetric” fitting scheme (directional in one ear and omnidirectional in the other) has been

proposed as a possible alternative to both manual and automatic switching in adult listeners. It is unknown

whether this asymmetric fitting will be a reasonable alternative for children. The purpose of this project is to

answer these questions through a series of three investigations. These investigations include: (1) quantification of school environments with regards to the most appropriate microphone mode (directional, omnidirectional, either); (2) quantification of appropriate switching of both automatic and manual directional switching

systems in school environments as a function of age, and (3) quantification of speech recognition across a

range of school listening environments for asymmetric and traditional symmetric microphone fittings (both

automatic and manually switched).
3-68 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

West Virginia

Project Safe EV-AC: Safe Evacuation and Accommodation of People

with Disabilities

West Virginia University

Job Accommodation Network (JAN)

224 Spruce Street

Morgantown, WV 26506

evac@icdi.wvu.edu

evac.icdi.wvu.edu

Principal Investigator: Richard Walls 304/293-7186

Public Contact: Beth Loy, Project Director 304/293-7186; Fax: 304/293-5407

Project Number: H133G040318

Start Date: September 01, 2004

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $149,970; FY 05 $149,949; FY 06 $149,884

Abstract: The Project Safe EV-AC (Safe EVacuation and ACcommodation of People with Disabilities)

Team, which includes the Job Accommodation Network and the National Organization on Disability’s

Emergency Preparedness Initiative, develops high quality, comprehensive, easy-to-use safe evacuation

materials that include people with disabilities. The Project Safe EV-AC Team researches prior safe evacuation studies and training products; coordinates a network of expert and end-user Advisor Groups; and

produces comprehensive, yet cost-effective, safe evacuation education and training tools using the most

appropriate technology for the material. Project Safe EV-AC targets certain audiences, including people

with disabilities and emergency responders. The project uses a continuous improvement model with enhanced feedback loops to ensure that the products created are rigorously evaluated by those who use them.

The end product includes a final report for NIDRR articulating the existing gaps in knowledge and product

development in the field of safe evacuation and accommodation for people with disabilities.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-69

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Functional Effects of Bifocal Use: Implications for Falling Interventions

University of Wisconsin/Milwaukee

Rehabilitation Research Design and Disability Center

College of Health Sciences

P.O. Box 413

Milwaukee, WI 53201-0413

Principal Investigator: Roger O. Smith, PhD

Public Contact: 414/229-6803 (V); 414/229-5628 (TTY); Fax: 414/229-6843

Project Number: H133G050340

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $149,999; FY 06 $149,950

Abstract: This project conducts an integrated set of research activities to address a seriously under considered factor in falls research, the use of bifocal lenses. This project focuses on new users of bifocal glasses,

typically individuals in their 4th or 5th decade, and targets a better understanding of falls intervention strategies related to eyeglass wear. Falls and fall-related injury among elders are a widely documented public

health problem causing decreased function, suffering, increased health care costs, and even morbidity and

mortality among older persons. Reasons for falls can be quite complex and are generally considered to be

multifactorial. Specific to middle aged workers, it is known that a significant number of workplace accidents

occur on stairs and uneven surfaces. Comparison of data across studies generates new knowledge about

the process of adaptation to multifocal lenses with application to falls in the elderly. Recommendations are

articulated not only for multifocal lens wearers but also for the producers of lenses and biomedical engineers.
3-70 NIDRR Program Directory FY 2006 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Development of Dynamic Pedorthosis for Improving Clubfoot Correction

Medical College of Wisconsin

Department of Orthopaedic Surgery

PO Box 1997, Suite C360

Milwaukee, WI 53201

xcliu@mcw.edu

Principal Investigator: Xue-Cheng Liu, PhD

Public Contact: 414/337-7323; Fax: 414/337-7337

Project Number: H133G060142

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $150,000

Abstract: The purpose of this development project is to use advanced technologies to establish a new

process to develop a customized dynamic pedorthosis for children with clubfoot. Researchers evaluate

children with and without clubfoot to obtain dynamic plantar pressure using EMED Pressure System and

three dimensional geometry from X-ray or CT scan. Based on this information, a computer model of the

dynamic pedorthosis is developed using Computer Aided Design (CAD) and Finite Element Modeling

(FEM). The analysis of FEM simulates walking with different percentage of body weight. The customized

CAD model is used to construct a negative mold of the pedorthosis using Solid Freeform Fabrication, a

rapid prototyping technique. Next, the pedorthosis is constructed from the negative mold. Each customized

pedorthosis constructed using this approach will have different material inserts as required to correct the

abnormal plantar pressure resulting from the clubfoot deformity. Finally, five patients with their customized

dynamic pedorthosis are followed clinically including X-ray, in-sole plantar pressure distribution study, and

functional outcome analysis. This information is used to evaluate the pedorthosis for reliability and effectiveness, and if needed, used to modify the current pedorthosis.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-71

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Clinical Reliability and Validity of a Foot Model: Assessing Efficacy and

Functional Outcome with Orthotic Intervention in Children with Cerebral

Palsy

Medical College of Wisconsin

Department of Orthopaedic Surgery

PO Box 1997, Suite C360

Milwaukee, WI 53201

xcliu@mcw.edu

Principal Investigator: Xue-Cheng Liu, PhD

Public Contact: 414/337-7323; Fax: 414/337-7337

Project Number: H133G060155

Start Date: January 01, 2007

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $150,000

Abstract: Equinovalgus and equinovarus are the most common foot and ankle abnormalities reported in

children with cerebral palsy (CP). Orthotic intervention is frequently prescribed for children with CP to

improve their standing, walking, and every day function. However, limited evidence exists to support the

impact of these devices to prevent deformities or improve function. Specifically, no long-term functional

outcome studies support use of different orthoses recommended by existing foot models. This study first

validates a six-segment-foot model with MRI data and assesses clinical reliability of the model with physical

examination and video-taped observational gait analyses in children with CP. Second, this study assesses the

efficacy of four types of orthoses and determines their benefits following a two year period, using the sixsegment-foot model, Gross Motor Function Measure, and Pediatric Evaluation of Disability Inventory.
3-72 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Colorado

Evaluation of a Speech Translation Approach Toward Independent,

Community-Based Communication for Individuals with Intellectual

Disabilities and Speech Impairments

AbleLink Technologies, Inc.

528 Tejon Street, Suite 100

Colorado Springs, CO 80903

steve@ablelinktech.com

www.ablelinktech.com

Principal Investigator: Steven Stock

Public Contact: 719/592-0347

Project Number: H133S060006

Start Date: October 01, 2006

Length: 6 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 06 $75,000

Abstract: This project develops and evaluates a prototype translator system determining the feasibility of

enabling independent and effective community-based communication for persons with intellectual disabilities

and speech impairments. The prototype is based on PDA technologies and provides evaluation through: (1)

the ability of persons with intellectual disabilities to use it independently; (2) the effectiveness of the approach in producing correct translations; and (3) qualitative measures of social acceptance and/or stigma

inspired by the approach. The personal and societal benefits of improved communication include the opportunity for increased independence, self-esteem, employability, community presence, and social connectedness for persons with cognitive disabilities and speech impairments.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-73

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Colorado

SSIMPLE: A Speech and Switch Input Mobile Phone that Links

Everyone

CreateAbility Concepts, Inc.

8007 Hillsboro Court

Fort Collins, CO 80525

stephenmsutter@aol.com

www.createabilityinc.com

Principal Investigator: Stephen M. Sutter

Public Contact: 970/391-8843; Fax: 970/635-0049

Project Number: H133S050073

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $75,000; FY 06 $0 (No-cost extension through 4/30/2006)

Abstract: This project demonstrates the technical merit, feasibility, and cost efficiency of combining commercially available SmartPhone technology with an innovative design and state-of-the-art neural net algorithms to produce a SSIMPLE device - a Speech and Switch Input Mobile Phone (that) Links Everyone.

This device enables single switch and voice-only users to independently send and receive text messages,

and answer or make phone calls. Specific objectives for Phase I are to: (1) Determine the end user requirements via surveys and focus group meetings; (2) construct a prototype that incorporates a Graphical User

Interface (GUI), fast Fourer transform (FFT) algorithms, and neural net algorithms to provide an easy to use

interface, and to provide fast learning of numbers, names, words, and symbol associations and therefore fast

prediction to maximize the efficiency of the voice command or single switch user; and (3) perform a usability

analysis with actual single switch users to test the SSIMPLE device’s ability to adjust to an individual’s

capabilities, and its ability to help them communicate.
3-74 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Florida

Mobile Language Reference for Deaf and Hard of Hearing K-12

Students

Vcom3D, Inc.

3452 Lake Lynda Drive, Suite 260

Orlando, FL 32817

jasonh@vcom3d.com

www.vcom3d.com

Principal Investigator: Jason Hurdich

Public Contact: 407/737-7310

Project Number: H133S060036

Start Date: October 01, 2006

Length: 6 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $74,961

Abstract: For this project, Vcom3D is developing and evaluating a proof-of-concept American Sign

Language and Signed English dictionary for handheld computer and media player devices. The dictionary

includes signed animations of English terms that can be difficult for Deaf learners to master including: idioms,

scientific terms, and multi-sense words. Based on Vcom3D signing software, the Mobile Language Reference provides mobility and independence that leads to opportunity-based learning in the classroom, on field

trips, or while reading a book anytime, anywhere. This software has potential as a commercial product for

use on multiple handheld computing platforms and other educational and game platforms developed by third

parties.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-75

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Illinois

Empirically Supported Job Interviewing Skills Training for People with

Disabilities: A Multimedia-Based Computer Simulation Approach

Vocational Consultants Press

5684 Caribou Lane

Hoffman Estates, IL 60192

lankwok@comcast.net

www.vocationalconsultantspress.com

Principal Investigator: Lan Kwok

Public Contact: 847/289-1668

Project Number: H133S060051

Start Date: October 01, 2006

Length: 6 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 06 $74,910

Abstract: Based on demand-side job interview research, this project develops a prototype, multimediabased software designed to teach job seeking and interview skills to people with disabilities. The software is

developed for persons with disabilities in vocational rehabilitation, rehabilitation counselors, rehabilitation

counselor educators, and human resources professionals. The software can be used as an evaluation and

training tool for persons with disabilities in vocational rehabilitation. Additionally, the software may be used

as a disability sensitivity tool for human resource professionals to assist in the identification of disability bias

patterns in making hiring decisions.
3-76 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Maryland

A Smart-Phone Based Text and Sign Reader for Persons with Visual

Disabilities

Applied Media Analysis, Inc.

387 Technology Drive, Suite 3110C

College Park, MD 20742

huiping@appliedmediaanalysis.com

www.appliedmediaanlysis.com

Principal Investigator: Huiping Li

Public Contact: 301/728-0694; Fax: 443/638-0236

Project Number: H133S060055

Start Date: October 01, 2006

Length: 6 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 06 $74,940

Abstract: This project demonstrates the technical feasibility of smart-phone based technology that utilizes a

text and sign reader, a portable software module, is compatible with existing personal devices, and provides

access to textual materials for persons with visual disabilities. Previous work on Optical Character Recognition is applied to cutting edge recognition technology for mobile devices which assist persons with low vision

with basic daily activities such as shopping, preparing meals, taking medications, and reading signs. This

technology offers several advantages: (1) it makes use of a single, portable device (smart phone) that is

commonly available and typically already carried for its telecommunications capabilities; (2) it can be used

selectively by users so that they will not be overwhelmed by irrelevant information from the environment;

and (3) it can be integrated directly with other applications for specialized tasks.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-77

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Maryland

Playmation: A Manipulative Story Animation System to Improve

Language, Theory of Mind, and Sequencing Skills in Children with

Autism

Intelligent Automation, Inc.

15400 Calhoun Drive, Suite 400

Rockville, MD 20855

smayhew@I-A-I.com

www.I-A-I.com

Principal Investigator: Shannon Mayhew

Public Contact: 301/294-5230; Fax: 301/294-5201

Project Number: H133S060050

Start Date: October 01, 2006

Length: 6 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 06 $75,000

Abstract: The Playmation prototype by Intelligent Automation, Inc., utilizes new technology to integrate the

powerful learning modalities of touch and manipulation within the familiar instructional paradigm of picture

and sentence strips. This system enables a child to create a three-dimensional character and move that

character across a picture strip to communicate a story. A web camera connected to a computer captures

the movement, machine vision software identifies the child’s play patterns, and story software translates

these patterns into an animated movie or a printable storybook. Children using this system may improve in

sequencing, theory of mind, and language skills especially in the case of children with autism. Playmation is

marketed as an education manipulative product in four principle markets: (1) public and private PreK-3

education, (2) Reading First and directly related programs, (3) Head Start pre-school programs, and (4)

IDEA/special education.
3-78 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Michigan

RF Tag and Development Systems for Manipulative Educational

Activities

AdamLab, LLC

55 East Long Lake Road, Suite 337

Troy, MI 48085

dbasile@adamlab.com

www.adamlab.com

Principal Investigator: David Basile

Public Contact: 248/362-9603; Fax: 248/362-9606

Project Number: H133S060071

Start Date: August 27, 2006

Length: 8 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 06 $74,910

Abstract: This project designs, tests, and evaluates the Teach ME system. The Teach ME system embodies universal design for learning principles by using smart sensor technology to create manipulative activities

for all students and specifically addresses the needs of students with cognitive disabilities. Research identifies

a family of radio frequency (RF) passive tags, both regular and anti-collision, and a reader/scanner chip that

supports a variety of dual tag educational applications. RF passive tags provide a cost-effective way to build

knowledge into the education environment and support manipulative education activities, while providing

concrete objects required by students with special needs.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-79

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Minnesota

System for a Collaborative and Dynamic Wheelchair Navigation Aid

Koronis Biomedical Technologies Corporation

16077 Baywood Lane

Eden Prairie, MN 55346

plichter@koronisbiotech.com; plichter@comcast.net

www.koronisbiotech.com

Principal Investigator: Patrick Lichter

Public Contact: 612/730-1091; Fax: 763/463-9000

Project Number: H133S060029

Start Date: October 01, 2006

Length: 6 months

NIDRR Officer: William V. Schutz, PhD, MSW, MPH

NIDRR Funding: FY 06 $75,000

Abstract: In this project, Koronis Biomedical Technologies Corporation develops and evaluates a prototype navigation device which attaches to a wheelchair and wirelessly communicates to a web-based navigation application. This navigation aid includes a small portable tablet PC that connects to the Internet using a

wireless modem. This tablet PC also connects to a USB Global Positioning System (GPS) module and a

prototype Navigation Sensor Module. The system allows a wheelchair user to plan and navigate a route

with respect to safety and shortest travel path while collecting data on location, orientation, and pathway

quality. The resulting system incorporates a collaborative model where individual users can easily input their

observations as they travel throughout the city and an interactive graphical user interface providing a means

for route input and retrieval using a portable touch-screen computing device.
3-80 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

New York

Conducting Online Transactions Using Non-Visual Modalities

XSB, INC.

25 East Loop Road, Suite 217

Stony Brook, NY 11790

h.singh@xsb.com

www.xsb.com

Principal Investigator: Harpreet Singh

Public Contact: 631/444-6801; Fax: 631/444-6775

Project Number: H133S060042

Start Date: October 01, 2006

Length: 6 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 06 $74,898

Abstract: This project explores the feasibility of building Tiresias, a model-directed system empowering

persons with visual impairment to conduct web transactions such as purchasing goods and paying utility bills

online using non-visual modalities. Tiresias addresses current information overload problems by delivering

relevant content through the coupling of content semantics with model-directed navigation. Throughout

every step of navigation, the user is presented with a relevant subset of content in the web page to listen to

and take an action. Content is identified using techniques ranging from simple keywords to sophisticated

concept classifiers. The development of Tiresias draws on the techniques of content analysis, knowledge

engineering, machine learning, and the effective use of speech technology.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-81

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Oregon

Why Go It Alone? The Use of Public Resources to Enhance Computer

Accessibility for Individuals with Cognitive Disabilities

Life Technologies

2691 Fairmount Blvd.

Eugene, OR 97403

laurie@coglink.com

www.coglink.com

Principal Investigator: Laurie Ehlhardt, PhD

Public Contact: 541/346-0572

Project Number: H133S060072

Start Date: October 01, 2006

Length: 6 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $75,000

Abstract: Individuals with cognitive impairments (CI) represent one of the fastest growing disability groups

in the United States. The potential for computer technology to increase social integration for this population

is well documented. However, cognitive and financial barriers frequently preclude the acquisition and

maintenance of personal computer hardware, software programs, and Internet service, thus significantly

limiting the CI population’s participation in a digital society. The Personal Access Computer Key (PACK) is

a USB drive that circumvents these barriers by providing a portable computing environment. The PACK is

designed to accommodate adapted software that can be launched on publicly accessible, updated computers maintained by on-site staff. Unlike specialized, handheld computing devices that may be difficult to

access due to smaller screens and keyboards, the PACK drive provides a means of accessing software

programs on a standard desktop computer without the cognitive and financial burden associated with

owning and maintaining such a system. Phase I employs an incremental design process to evaluate the

feasibility of the PACK to launch an adapted email program (“CogLink”) on publicly accessible computers.

Five participants with cognitive impairments will be recruited to participate in the study.
3-82 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Pennsylvania

Low Vision Lime: Solution for Low Vision Musicians to Perform, Edit,

and Print Music Notation

Dancing Dots Braille Music Technology, L.P.

1754 Quarry Lane, P.O. Box 927

Valley Forge, PA 19482

info@dancingdots.com

www.dancingdots.com

Principal Investigator: William McCann

Public Contact: 610/783-6692

Project Number: H133S060015

Start Date: October 01, 2006

Length: 6 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 06 $75,000

Abstract: This project explores the feasibility of enhancing the well-established Lime notation software with

features to benefit musicians with low vision. Enhancements include: the presentation of musical measures for

the low vision reader; adding functionality by offering user-definable settings in adjusting magnification of

staff notation, colors, and screen contrast, building on Windows accessibility features and third-party

magnification utilities where necessary; options to view results on a large, flat-panel monitor mounted on

conventional music stand; and foot switching controls. The result is stand-alone software that allows the

scanning/importing of scores, reformatting of their layouts to permit musicians with low vision to read and

perform the score, and accessible options for editing and printing with appropriate magnification and scrolling.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-83

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Utah

Wireless EMG and Improved Mounting System

Motion Control, Inc.

115 North Wright Brothers Drive

Salt Lake City, UT 84116

harold@utaharm.com

www.utaharm.com

Principal Investigator: Harold Sears

Public Contact: 801/326-3434; Fax: 801/978-0848

Project Number: H133S060017

Start Date: October 01, 2006

Length: 6 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 06 $75,000

Abstract: This project attempts to develop a very small, water-proof electromyographic (EMG) sensor for

a myoelectric arm prosthesis which transmits by a wireless link and can be easily and consistently installed

over any muscle site. The wireless link eliminates wires and connectors inside the arm socket which can be

bulky and unreliable due to corrosion and breakage of wires, representing a significant improvement in

prosthetic arms affecting both the patient and prosthetist. Designs allow for fast and reliable mounting which

improve the consistency of contact with the skin. This is obtained by mounting EMG sensors in a flexible

inner liner (a “roll-on liner”), then the wireless corrosion-proof EMG sensor is securely fastened via an easy

snap connection. The digital processing of EMG greatly improves EMG dependability by allowing more

effective filtering for elimination of interference and noise, an ever-increasing problem in the age of cell

phones and electric motors.
3-84 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Virginia

My Scrivener TM: Innovative Technology to Enhance Fine Motor

Function.

Susan E. Palsbo

1105 North Rochester Street

Arlington, VA 22205

obslap.research@comcast.net

Principal Investigator: Susan E. Palsbo, PhD

Public Contact: 703/499-6643

Project Number: H133S060068

Start Date: October 01, 2006

Length: 6 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 06 $75,000

Abstract: This project creates a rehabilitation intervention prototype, My Scrivener TM, for fine motor skill

development and instruction in printing. My Scrivener TM consists of two personal computers, two forcefeedback peripheral haptics devices, a cable or internet connection linking the two workstations, and

associated software. The project develops new classroom-ready instructional software incorporating

existing telehaptics software (proSENSE) and a haptics computer peripheral device (Sensable Phantom®

Omni). An advisory panel provides technical input from the perspectives of practicing school-based therapists, a handwriting researcher, an assistive technology specialist, and a physiatrist. The prototype is evaluated by eight children with impaired fine-motor skills and two general education instructors.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-85

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Arizona

Development of Collapsible Folding Manual Wheelchair - Phase II

Three Rivers Holdings, LLC

1826 West Broadway Road, Suite 43

Mesa, AZ 85202

david@3rivers.com

www.3rivers.com

Principal Investigator: Chris Willems

Public Contact: David Boninger 480/833-1829; Fax: 480/833-1837

Project Number: H133S030016

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $247,048; FY 04 $252,848; FY 05 $0 (No-cost extension through 9/30/2006);

FY 06 $0 (No-cost extension through 6/30/2007)

Abstract: In the first phase, this project designed, built, and conducted bench-top testing of a compact,

forward-folding, ultralight manual wheelchair with an innovative design that incorporates “swing-down”

access wheels for navigation in confined areas. This facilitates access to narrow environs such as those

encountered in compact dwellings, offices, restrooms, and transportation settings. When using the access

wheels, the wheelchair also fits down the aisle of airplanes and collapses to be stowed in the overhead

compartment. The prototype has an adjustable axle, adjustable backrest and seat angle, and a folding

design that acts like a rigid frame. Testing of the prototype confirmed that it met or exceeded ANSI/RESNA

standards, and it performed equivalently or better than other comparable ultralight manual wheelchairs on

those standards. In the second phase, the project: (1) continues to make design improvements to further

maximize functionality and ease of use, (2) verifies that the new design meets ANSI/RESNA standards, (3)

has wheelchair users evaluate the prototype after use in an Activities of Daily Living Course, and (4) has

users take the chair home for an extended trial-use period that allows for an in-depth evaluation of the

prototype wheelchair and allows users to compare the prototype with their personal wheelchair on a wide

variety of dimensions.
3-86 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Arizona

Development of a Lightweight Adjustable, Modular Pediatric Wheelchair

Three Rivers Holdings, LLC

1826 West Broadway Road, Suite 43

Mesa, AZ 85202

chris@3rivers.com

www.3rivers.com

Principal Investigator: Chris Willems 480/833-2541

Public Contact: David Boninger 480/833-1829; Fax: 480/833-1837

Project Number: H133S050134

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $287,208; FY 06 $212,773

Abstract: Pediatric wheelchair users experience rapid physical growth and rapidly changing cognitive and

functional skills that create unique needs that are underserved by currently available pediatric wheelchairs. In

Phase I, the project designed and constructed a prototype tilt-in-space wheelchair called the PALM (pediatric, adjustable, lightweight, and modular) that is specifically designed to meet pediatric needs. Phase II

project goals include: (1) To further refine the design of the PALM, (2) verify functionality of the prototype

through end-user testing and evaluation on an Activities of Daily Living Course, and (3) conduct two-week

take-home trials that allow for in-depth evaluation of the PALM in the natural environment of the end-user

and allow parents and children to compare the PALM with the child’s own wheelchair on a wide variety of

dimensions. The final result is to create a tilt-in-space pediatric wheelchair that can meet the unique needs of

a growing child, can provide all the desired features of an optimal daily-use pediatric wheelchair, and can

also be manufactured at low cost so that it can be made widely available to the pediatric populations in the

US and international markets.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-87

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Colorado

WorkRight SkillBuilder: A Customizable State-of-the-Art Simulation

Software System to Support Vocational Social Skills Training for

Students and Adults with Intellectual Disabilities

AbleLink Technologies, Inc.

528 North Tejon Street, Suite 100

Colorado Springs, CO 80903-1158

steve@ablelinktech.com

www.ablelinktech.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S060099

Start Date: October 01, 2006

Length: 24 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $250,000; FY 07 $250,000

Abstract: In Phase I, research demonstrated the feasibility of using state-of-the-art computer avatars for

providing social skills training for individuals with intellectual disabilities. The results showed a significant

improvement of social skills knowledge when engaging in an independently usable assessment and training

system that utilizes state-of-the-art computer simulation, animation, a multimedia framework, and universal

design concepts. The WorkRight SkillBuilder system builds upon these results to create, validate, and

evaluate a robust series of social skills training modules. In Phase II, additional research and development

includes: (1) generating and validating 50-100 social skills training scripts; (2) developing scripts into computer animated vignettes; (3) researching options for personalizing scripts to meet the real world needs of

individuals with intellectual disabilities; and (4) conducting an extended field evaluation determining the

efficacy of the system for improving social skills knowledge and transference of this knowledge into practice. The WorkRight SkillBuilder system provides opportunities for increased independence, self-esteem,

employability, income, community presence, and social connectedness for persons with intellectual disabilities.
3-88 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Florida

Multimedia Literacy Software for Deaf or Hard-of-Hearing, and Visual

Learners

Vcom3D, Inc.

3452 Lake Lynda Drive, Suite 260

Orlando, FL 32817

eds@vcom3d.com

www.vcom3d.com

Principal Investigator: Edward Sims

Public Contact: 407/737-7370; Fax: 407/737-6821

Project Number: H133S050137

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $249,436; FY 06 $248,277

Abstract: Persons who are Deaf or hard of hearing (D/HH) have difficulty learning to read and write

proficiently. Over the last decade, several software screen readers and literacy tools have been developed

for persons with blindness and learning disabilities. However, to date, none of these tools has incorporated

features and functions that specifically target the needs of the (D/HH) population. This project is developing

a fully functional Multimedia Literacy Software (MLSW) program that addresses the needs of D/HH, as

well as other students, and identifies the best uses of the MLSW in the instruction of reading skills. The

creation of a multimedia module presents a highly detailed representation of an animated human that can:

Speak selected words and text segments, while demonstrating correct mouth movement to form speech

sounds; automatically translate English text into Signed English, which may be viewed with or without

accompanying speech; and provide ASL or Signed English definitions of selected English words. The

prototype MLSW and the supporting instructional materials serve as the basis for a commercial software

product that may be stand-alone or licensed and bundled with currently available and evolving assistive

reading and writing software.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-89

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Indiana

SoundAlert - A Centralized System Capable of Alerting People Who Are

Deaf or Hearing Impaired of Critical Sounds in Their Environment

CreateAbility Concepts, Inc.

726 Country Walk Drive

Brownsburg, IN 46112

ss_creatability@yahoo.com

www.createabilityinc.com

Principal Investigator: Stephen M. Sutter

Public Contact: 317/777-0356

Project Number: H133S060109

Start Date: October 01, 2006

Length: 24 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $250,000

Abstract: This project’s research and development results in a comprehensive system that delivers natural

warning and communication mechanisms for people with hearing loss. The SoundAlert system offers a

unique approach to enable individuals who are deaf or hard of hearing to: (1) initiate and receive emergency

communications; (2) receive alerts in the workplace or home environments on a single, pocket-sized device

through innovative sound discrimination techniques able to identify specific sounds with accuracy; and (3)

combine this functionality with supplementation or replacement of other alerting technologies for convenience on the same single platform. The system enables outbound and inbound communication with emergency services in response to such events as evacuation or rescue information when needed, thus alleviating

a major concern of this population for their personal safety. Specific goals of Phase II research include: (1)

enhancing and completing the SoundAlert sensors and application; (2) adding real-time voice-to-print

capability to facilitate communication; (3) performing extended evaluation of the system to evaluate its utility

in a range of activities in vocational and daily living scenarios; and (4) preparing a smooth transition into

Phase III commercialization of the SoundAlert product. The functionalities enhance the user’s sense of

safety, security, and independence through: (1) bringing alerts of identified sound events to the user; (2)

combining or replacing existing alerting systems on a single platform; and (3) implementing the delivery

platform on a convenient and lightweight handheld device.
3-90 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Maryland

StoryTiles: Programmable Manipulatives to Improve Language,

Sequencing, Theory of Mind, and Play Skills in Children with Autism

Intelligent Automation, Inc.

15400 Calhoun Drive, Suite 400

Rockville, MD 20855

smayhew@i-a-i.com

www.i-a-i.com

Principal Investigator: Shannon Beltz Mayhew

Public Contact: 301/294-5230; Fax: 301/294-5201

Project Number: H133S040132

Start Date: October 01, 2004

Length: 24 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $250,000; FY 05 $250,000; FY 06 $0 (No-cost extension through 12/31/

2006)

Abstract: This project develops and field tests StoryTiles, a device with programmable manipulatives that

foster language, sequencing, theory of mind, and play skills among children with autism. Children can to use

this device to experiment with storytelling, and in doing so, work with sequencing, creative play, and language structures as they manipulate programmable, tangible objects. In this effort, IAI conducts a study

using a prototype in a preschool classroom to determine ways StoryTiles can be used for special needs

inclusion activities within a mainstream classroom. Software and device designs are improved, and researchers build 15 Phase II StoryTiles devices with accompanying story publishing software. In addition, IAI

works with Laureate Learning, Inc. to integrate their language learning software with StoryTiles. IAI also

conducts focus group with therapists, teachers, and parents of children with autism to produce material for a

StoryTiles instructional guide. Finally, IAI conducts field tests with children with autism to determine the

educational effectiveness of the Phase II device.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-91

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Maryland

Delivery of Cost-effective, Real-time, Remote Transcription Services

Institute for Disabilities Research and Training, Inc.

11323 Amherst Avenue

Wheaton, MD 20902

carl@idrt.com

www.idrt.com

Principal Investigator: Carl J. Jensema, PhD

Public Contact: 301/942-4326; Fax: 301/942-4439

Project Number: H133S050129

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 05 $249,999; FY 06 $249,999

Abstract: This project focuses on establishing a low-cost, school-operated, remote real-time transcription

service for students with disabilities using speech recognition technology, off-the-shelf equipment, and

commonly available software. Phase I demonstrated the feasibility of this concept. In Phase II, the concept

is expanded and refined through a transcription service for students with disabilities. The developed training

materials are used to develop a commercial product that allows other school systems to set up transcription

services for students with disabilities.
3-92 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Massachusetts

Proximity Sensing Textile as a Wearable Aid to Orientation and Mobility

for Individuals with Visual Impairment

Science, Math & Engineering, Inc.

45 Manning Road

Billerica, MA 01821-3934

burns@aerodyne.com

www.aerodyne.com

Principal Investigator: Michael L. Burns, PhD

Public Contact: 978/663-9500, ext. 282; Fax: 978/663-4918

Project Number: H133S060100

Start Date: October 01, 2006

Length: 24 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 06 $250,078

Abstract: This project continues development of Proximity Sensing Textile as a wearable, electronic travel

mobility aid that preserves the comfort, appearance, and dignity of everyday apparel. Proximity Sensing

Textile is a smart textile array of infrared sensors embedded in conventional clothing that detects and reports

hazards such as drop-offs, overhangs, and jutting objects to the wearer. The clothing supplies hazard

avoidance cues to the wearer that complement orientation, mobility, and navigation information accessible to

the wearer from wayfinding systems, be they infrared, GPS, or radio technology based. In Phase II, a textile

results that actively interrogates the immediate environment of the wearer for hazards and reports them

through cues designed into the clothing. Commercial applications exist for individuals with mobility impairments who have difficulty scanning the physical environment because of range of motion limitations such as

people with cerebral palsy, spinal cord injury, or spina bifida, among other disabilities.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-93

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Minnesota

Powered Mounting and Positioning System

Blue Sky Designs, Inc.

2637 27th Avenue South, Suite 209

Minneapolis, MN 55406

dianne@blueskydesigns.us

www.blueskydesigns.us

Principal Investigator: Dianne Goodwin

Public Contact: 888/724-7002; 612/724-7002;; Fax: 612/724-7004

Project Number: H133S060096

Start Date: October 01, 2006

Length: 6 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 06 $237,212

Abstract: In Phase two, a powered mounting and positioning system is developed and provides independent access to communication devices, work surfaces, books, cell phones, PDAs, food, drinks, and more

for individuals with significant limitations. Device positioning is controlled through switches, voice, or joystick

control. Programming is accomplished with a single switch. A person may move the mount to one of four

custom set positions and make independent adjustments to each joint, the tilt, and the height. For example:

tilting or rotating a communication device display to avoid glare. With a powered positioning system and the

ability to rotate whatever object is mounted 360 degrees, different devices (a book, cell phone, and AAC

device) mounted on a single tray can be rotated into position, allowing a person to change activities or

access other items. This technology can be applied outside the rehabilitation field. The commercial potential

extends to other areas, such as manufacturing and assembly settings, doctors, dentists, surgeons, hospital

beds, photography and lighting applications, ergonomic workstations, nursing homes, schools, laboratories,

and home entertainment systems. The increased independence gained has a substantially positive impact on

a person’s self-reliance, their work and school performance, and their sense of control.
3-94 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

New York

Visual – Spatial Math Problem Solving Strategy Intervention on a

Handheld Wireless Device for Math Disabilities in Inclusive Classrooms

Learnimation, LLC

53 West 90th Street #4

New York, NY 10024

www.learnimation.com

Principal Investigator: Sarah Manning

Public Contact: 212/496-7536

Project Number: H133S050167

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $251,261; FY 06 $248,739

Abstract: This project builds and evaluates a universally designed, handheld/wireless educational software

intervention that trains students with learning disabilities (LD) and their teachers to use a metacognitive

strategy for translating mathematical word problems into visual-spatial schematic models. This intervention is

based on the prototype created in Phase I. Phase I research suggests that a universally designed, researchbased, handheld-based, visual-spatial metacognitive strategy technique offers great promise as a costeffective mathematics intervention for students with LD. The resulting commercial software product will

improve the capacity for mainstream teachers to assist students with LD in reaching their full potential in

mathematics.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-95

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

New York

Web-Enabled Creation and Distribution of Audio-Tactile Maps for Use in

Orientation and Mobility Training

Touch Graphics, Inc.

330 West 38 Street, Suite 1204

New York, NY 10018

sl@touchgraphics.com

www.touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 212/375-6341; Fax: 646/452-4211

Project Number: H133S060105

Start Date: October 01, 2006

Length: 24 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 06 $254,823

Abstract: Phase II of this project develops a system for providing one-off, talking, tactile neighborhood

maps on demand for use by individuals who are blind, have low vision, or have other print disabilities. Files

downloaded from a website are used to create raised-line maps from standard Braille embossers or using

other methods. The finished maps are placed on a Talking Tactile Tablet, a computer peripheral device, and

the user interacts with a map by exploring it through touch sense, pressing down on streets and other

features to hear names and descriptions of map entities of interest. The system, TMAP Reader, includes a

web service for requesting maps of any location in the US, a software application for outputting downloaded map files to a standard Braille embosser, an application that facilitates user interaction with the maps,

and a map production and delivery service for novice users or users without access to equipment for

outputting maps. Additional Phase II research demonstrates how this technology can be used to create other

kinds of talking tactile maps on demand, including transit system, campus, city, and regional maps, and

includes considerations of how these could be used in teaching geography, history, and other subject matter.
3-96 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

New York

Diabetes Communications for the Disabled

Med Graph, Inc.

53 Glenside Way

Rochester, NY 14612

info@med-graph.com

www.med-graph.com

Principal Investigator: Ed Schlueter

Public Contact: 585/453-9437

Project Number: H133S060097

Start Date: October 01, 2006

Length: 24 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 06 $247,443

Abstract: Med Graph, Inc. (MGI) successfully proved the feasibility of the Life Improvement Portal (LIP)

Glucose Monitoring System (GMS) for persons with vision and hearing disabilities. During Phase II, MGI

refines and readies the pre-production prototype for the Phase III commercialization by incorporating

additional consumer input into its design, further developing the GMS capabilities to include voice output,

and testing the effectiveness and consumer satisfaction levels via clinical trials. GMS works in conjunction

with LIP to collect, store, analyze, and track glucose readings for people with diabetes. The GMS connects,

via a standard phone line, to the LIP to ensure that the person with diabetes is immediately notified of low,

normal, and high glucose thresholds that have been established by their physician. The LIP uploads

glucometer information at the push of a button or at predetermined intervals throughout the day into the

secure central server. Once transmitted, data is analyzed for emergency indicators, and priority information

is reported back to the diabetic user via feedback from the LIP. Physicians are able to immediately access

this information via the central server, helping to avoid complications from fluctuating glucose levels. All

aggregated data can then be viewed by the person with diabetes, an approved caregiver, or a physician in

graphical formats via a secure website that is accessible to W3C standards.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-97

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

North Dakota

Disability Access

Spirit Lake Consulting, Inc

P.O. Box 663; 314 Circle Drive

Fort Totten, ND 58335

annmaria@spiritlakeconsulting.com

www.spiritlakeconsulting.com

Principal Investigator: AnnMaria Rousey DeMars 310/717-9089

Public Contact: Erich Longie 701/351-2175; Fax: 310/496-2068

Project Number: H133S050165

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $237,315; FY 06 $234,105

Abstract: Phase I of this project combined software and on-site training program for persons with disabilities and their families who lack the usual prerequisites for success in computer-based learning. The Phase II

project is expanding the prototype of computer-based instruction created in Phase I into an empirically

validated commercial product. The project’s technical objectives are: (1) The development of a unique

virtual school house model to meet the identified needs of individuals with disabilities and their families living

in remote, disadvantaged communities, and (2) the empirical assessment of the impact of training using this

model for different demographic groups and under different training conditions. Testing is conducted on

reservations serving Sioux, Chippewa, and the Three Affiliated Tribes.
3-98 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Pennsylvania

Universal Access to Passenger Rail

Marshall Elevator Company

2015 Mary Street

Pittsburgh, PA 15203

Lvanroosmalen@marshallelevator.com

www.marshallelevator.com

Principal Investigator: Linda van Roosmalen, PhD

Public Contact: Rob Jamison 412/431-1340

Project Number: H133S050136

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $249,825; FY 06 $249,925

Abstract: Freight rail shares train tracks with passenger rail cars. The differences in car width result in

horizontal gaps between passenger rail cars and boarding platforms. This gap creates safety hazards not

only for wheelchair users but also for the elderly, for individuals with visual impairment, and even for other

passengers boarding rail cars. This project continues the research on the Phase I prototype QuickRampTM.

Phase II activities optimize QuickRamp’sTM strength, durability, and drive mechanisms; and evaluate the

system for safety and usability. This technology provides a universal solution to the rail access problem and

solves platform-to-rail car access for all potential rail passengers including individuals using wheeled mobility, children, individuals with visual impairment, and the elderly. Additionally, it eliminates rail personnel

assistance for individuals with disabilities boarding or exiting trains, ensuring passenger independence for all

train riders.
NIDRR Program Directory FY 2006 - Technology for Access and Function 3-99

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Texas

Increasing Mobility Through Advanced Power Sources for Assisted

Mobility Devices

Lynntech, Inc.

7607 Eastmark Drive, Suite 102

College Station, TX 77840

jeremy.steinshnider@lynntech.com

www.lynntech.com

Principal Investigator: Jeremy Steinshnider, PhD

Public Contact: 979/693-0017; Fax: 979/694-8536

Project Number: H133S060098

Start Date: October 01, 2006

Length: 24 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 06 $294,890

Abstract: Lynntech, Inc. develops a high-capacity hydrogen storage system for a fuel cell/battery hybrid

power supply for electric wheelchairs and scooters. The light-weight, rugged, simple to recharge, and

environmentally friendly system is fabricated to deliver over 1.2 kW of peak power and optimized for an

average power use of 430 W, weigh 20 kg, and deliver 12,000 Watt hours of energy, equivalent to over 28

hours continuous run-time without recharging. The resulting power supply permits a powered mobility aid to

operate, under typical usage, for up to two weeks between recharging. This equates to a ten-fold increase in

range for high power systems such as TEFTEC’s OmegaTrac wheelchair. Lightweight, compact, low power

versions of the system have commercial application in pushrim activated power-assisted wheelchairs. Initial

production expects to focus on systems that can be retrofitted to existing wheelchairs and scooters.
3-100 NIDRR Program Directory FY 2006 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Texas

Development of a Nemeth Math to Latex Backtranslator System

Logical Solutions Software

8200 Chambray Court

Plano, TX 75025

deepa_gopal@hotmail.com

www.logicalsoft.net

Principal Investigator: Deepa Gopal

Public Contact: 972/390-7329; Fax: 972/390-7329

Project Number: H133S050160

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 05 $249,500; FY 06 $62,650

Abstract: Phase II project objective is to extend and enhance the prototype developed in Phase I to obtain

a reliable, robust, and complete software environment for backtranslating mathematical documents (containing mathematical expressions coded in Nemeth Math code as well as regular text coded in ASCII Grade 2

Braille) to Latex. This project is conducting research on: (1) automatic detection and recovery from errors in

the Math document encountered during backtranslation; (2) automatic identification of parts of the documents that contain text, mathematics, and spatial arrangements respectively; and (3) allowance for hard

copy input via Optical Braille Recognition. The system greatly facilitates students, scientists, and engineers

with visual impairments to communicate with their sighted instructors and colleagues.
Participation and Community Living

NIDRR's focus on participation follows the stated purpose of independent living

programs to promote a philosophy of independent living, including a philosophy of

consumer control, peer support, self-help, self-determination, equal access, and

individual and system advocacy, in order to maximize the leadership, empowerment,

independence, and productivity of individuals with disabilities, and the integration and

full inclusion of individuals with disabilities into the mainstream of American society.

NIDRR sponsors research to improve knowledge of individual- and societal-level

factors that may serve as barriers to, or facilitators of, participation among all people

with disabilities.

Contents

Rehabilitation Research and Training Centers (RRTCs) ............................................................................ 3

Disability and Rehabilitation Research Projects ...................................................................................... 14

Field Initiated Projects (FIPs) ............................................................................................................... 18

NIDRR Program Directory FY 2006 - Participation and Community Living 4-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center on Personal Assistance

Services

University of California, San Francisco

Department of Social and Behavioral Sciences

3333 California Street, Suite 455

San Francisco, CA 94118-0612

pas@ucsf.edu

www.pascenter.org

Principal Investigator: Charlene Harrington, PhD, RN 415/476-4030

Public Contact: 866/727-9577; 415/502-7190 (V); 415/502-5216 (TTY); Fax: 415/476-6552

Project Number: H133B031102

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $900,000; FY 04 $900,000; FY 05 $900,000; FY 06 $900,000

Abstract: This project provides research, training, dissemination, and technical assistance on issues of

personal assistance services (PAS) in the United States. Center projects focus on: (1) the relationship

between formal and informal PAS and caregiving support, and the role of AT in complementing PAS; (2)

policies and programs, barriers, and new models for PAS in the home and community; (3) workforce

development, recruitment, retention, and benefits; and (4) workplace PAS models that eliminate barriers to

formal and informal PAS and AT at work. The Center is based at the University of California, San Francisco, and includes the Topeka Independent Living Resource Center, InfoUse, the Paraprofessional

Healthcare Institute, the Institute for the Future of Aging Services, as well as faculty members at the University of Maryland, Baltimore County Policy Sciences Graduate Program, the West Virginia University Job

Accommodation Network, and the University of Michigan’s Institute of Gerontology and the Department

Health Management and Policy. A Blue Ribbon Advisory Committee of PAS users, disability advocates,

business leaders, independent living center leaders, and academics provide guidance to the project.
4-4 NIDRR Program Directory FY 2006 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Florida

Rehabilitation Research and Training Center for Children’s Mental

Health

University of South Florida

Florida Mental Health Institute

13301 Bruce B. Downs Boulevard MHC2335

Tampa, FL 33612-3807

kutash@fmhi.usf.edu

rtckids.fmhi.usf.edu

Principal Investigator: Robert Friedman, PhD 813/974-4640

Public Contact: Krista Kutash, PhD 813/974-4661 (V); Fax: 813/974-6257

Project Number: H133B040024

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $835,000; FY 05 $835,000; FY 06 $835,000

Abstract: The Research and Training Center Children’s Mental Health conducts an integrated set of

research projects designed, in the short run, to enhance knowledge about effective implementation of

systems of care, and, in the long run, to make it possible for children with serious emotional disturbances to

live, learn, work, and thrive in their own communities. The Center has developed a theory of factors that

contribute to effective implementation; within that theory is a strong emphasis on the importance of understanding from a systemic perspective the interrelationship between the different factors, and their relationship

to the community culture and context in which a service delivery system exists. The Center has a set of six

interconnected research projects that use both quantitative and qualitative methods, and are holistic in their

focus, to further test and develop its theory. The Center translates new knowledge from research into

change in policy and practice through a targeted program of training, consultation, technical assistance,

publication, and dissemination. To support these efforts, the Center maintains dissemination partnerships

with a range of organizations committed to help present research findings in formats well-suited for key

audiences of state and local policy makers, family organizations, researchers, and representatives of related

service sectors.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Aging with

Developmental Disabilities

University of Illinois at Chicago

Department of Disability and Human Development MC 626

College of Applied Health Sciences

1640 Roosevelt Road

Chicago, IL 60608-6904

rrtcamr@uic.edu

www.rrtcadd.org

Principal Investigator: Tamar Heller, PhD 312/413-1537

Public Contact: Alan Factor, Associate Director 800/996-8845 (V); 312/413-1860 (V); 312/413-0453

(TTY); Fax: 312/996-6942

Project Number: H133B031134

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 03 $750,000; FY 04 $749,998; FY 05 $750,000; FY 06 $749,997

Abstract: The mission of the RRTCADD is to have a sustained beneficial impact on the health and community inclusion of adults with intellectual and developmental disabilities (I/DD) as they age through a coordinated set of research, training, and dissemination activities. Major goals are: (1) improving health and

function of adults with I/DD, (2) enhancing caregiving supports and transition planning among older

caregivers and other family members, and (3) promoting aging and disability friendly environments that

enable adults with I/DD to participate in community life. Each goal is addressed through coordinated and

complementary sets of activities within the core areas. Projects promoting health and functioning include:

examination of age-related changes, epidemiological surveys, research on health care utilization, and development of community-based health promotion interventions. To enhance caregiving supports and transition

planning, RRTCADD research includes epidemiological surveys on family demographic and health characteristics, including families of minority backgrounds and families of persons with dual diagnoses of I/DD and

psychiatric impairments; sibling roles and interventions in transition planning; and consumer direction in

family support. Projects examining aging and disability-friendly environments include research to identify

features of communities and residences that hinder and assist community integration as people with I/DD

age, state policies regarding nursing home use, and dementia care in family homes and other community

residences. Training and dissemination activities involve collaborations with national provider, professional,

and consumer organizations to enhance skills and to promote progressive interventions and policies.
4-6 NIDRR Program Directory FY 2006 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Full Participation in

Independent Living

The University of Kansas

Research and Training Center on Independent Living

1000 Sunnyside Avenue

Room 4089 Dole Center

Lawrence, KS 66045-7555

rtcfpil@ku.edu

rtcfpil.org

Principal Investigator: Glen W. White, PhD 785/864-4095

Public Contact: 785/864-4095 (V); 785/864-0706 (TTY); Fax: 785/864-5063

Project Number: H133B000500

Start Date: January 01, 2001

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $499,876; FY 02 $661,864; FY 03 $626,364; FY 04 $499,876; FY 05 $0

(No-cost extension through 12/31/2006); FY 06 $0 (No-cost extension through 6/30/2007)

Other Funding: FY 02 $299,999 (NIDRR Dissemination & Utilization)

Abstract: Through research, training, and dissemination, this project makes available person-environment

strategies that enable full participation in society by persons with disabilities from diverse cultures, varying

socioeconomic strata, and emerging disability populations. This mission is implemented through multiple

research and training activities that are influenced by independent living (IL) philosophy and values; for

example, participatory action research is emphasized, in which consumers take an active role throughout the

research process. The RRTC develops, tests, and uses measurement tools to investigate the interactional

relationship between personal and environmental factors and their effects on full participation in IL by the

designated populations. Based on the project’s Analytical Research Framework, the four core areas of

intervention development and testing include: (1) increasing the knowledge base about the emerging universe

of disability, (2) community participation and wellness, (3) cultural IL accommodations, and (4) personal

and systems advocacy.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Measurement and

Interdependence in Community Living RRTC/MICL

The University of Kansas

Research and Training Center on Independent Living

1000 Sunnyside Avenue

Room 4089 Dole Center

Lawrence, KS 66045-7555

rtcil@ku.edu

www.rtcil.org

Principal Investigator: Glen W. White, PhD 785/864-4095

Public Contact: Pam Wilits 785/864-4095 (V); 785/864-0706 (TTY); Fax: 785/864-5063

Project Number: H133B060018

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 06 $649,839

Abstract: The goal of the Research and Training Center on Measurement and Interdependence in Community Living (RRTC/MICL) is to increase the independence and participation of people with disabilities in

their communities through the development and implementation of scientifically sound, theoretically driven,

and evidence-based interventions. RRTC/MICL researchers accomplish this through six core projects. Two

research projects, one on community participation and a second on economic utility, involve development of

theory-driven measurement tools. The remaining four projects include the application of these measurement

tools as part of their methods and procedures. Two of these projects are interventions and two develop

model assessments. The first assessment project uses secondary analysis to develop and implement a model

for assessing the economic utility and health-related outcomes of participants enrolled in Home and Community-Based Service (HCBS) waivers. The second assessment project evaluates the effects of different

independent living advocacy-service models to determine the comparative effectiveness of different models

in increasing community participation. The first intervention project examines the effectiveness of personal

assistance services and enhanced training to increase consumer participation in the community. Finally, the

second intervention project is a multisite study that examines the effects of a consumer-led grassroots

approach in identifying and removing barriers to increase community participation. Together, these projects

represent a comprehensive, integrated, and robust set of activities that recognize that “disability” is an

interaction between the characteristics of an individual and his or her environment.
4-8 NIDRR Program Directory FY 2006 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center Recovery and Recovery

Oriented Psychiatric Rehabilitation for Persons with Long Term Mental

Illness

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

mfarkas@bu.edu; erogers@bu.edu

www.bu.edu/cpr/research/rtc2004/

Principal Investigator: Marianne Farkas, ScD; E. Sally Rogers, ScD 617/353-3549

Public Contact: E. Sally Rogers, ScD 617/353-3549; Fax: 617/353-7700

Project Number: H133B040026

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $750,000; FY 05 $750,000; FY 06 $750,000

Abstract: This project focuses on the concepts and dimension of recovery and the various factors that

inhibit and facilitate recovery from long-term mental illness by a comprehensive and meritorious set of

research projects and training, technical assistance, and dissemination activities. The research and the

training, dissemination, and technical assistance programs are organized into the following three programmatic areas of investigation and development: concepts and dimensions of recovery; factors enhancing

recovery, and factors inhibiting recovery. The research projects are designed to have an impact on the field

at multiple levels, including the personnel level as well as the program and system levels. Research projects

use a participatory research process with significant input from consumers and other stakeholders, and

culminate in dissemination, training, or technical assistance activities to maximize the input of the research

program. The Training, Dissemination, and Technical Assistance (TDTA) projects are designed to provide

exposure, experience, and expertise levels of knowledge transfer. The TDTA program produces new

technologies in recovery and psychiatric rehabilitation, as well as increases the likelihood that researchers,

service providers, and others use the cumulative knowledge developed by the RRTC. The RRTC is tied

together by its programmatic focus on three specific core areas, strengthened by the use of appropriate

research strategies, and assisted by a vigorous program of training, technical assistance, and dissemination

activities designed to maximize the impact of the RRTC at all levels in the field of psychiatric rehabilitation.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-9

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Opening Doors for Children with Disabilities and Special Health Care

Needs

Children’s Hospital

Institute for Community Inclusion

300 Longwood Avenue

Boston, MA 02115-5737

www.communityinclusion.org

Principal Investigator: Judith S. Palfrey, MD

Public Contact: 617/355-4661; Fax: 617/730-0633

Project Number: H133B060012

Start Date: October 01, 2005

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $800,000

Abstract: This rehabilitation research and training center (RRTC) on children with disabilities who have

special health care needs (CYDS) tests the effectiveness of two intensive interventions, integrated transition

planning and community participation in recreation and fitness, and demonstrates the viability of a screening

tool to promote access to services and supports for traditionally underserved communities. Research

activities include two intervention projects that use randomized controlled designs to improve the educational and recreational activities of CYDS and a demonstration project to improve the early identification of

CYDS from traditionally underserved communities. Research Study 1 investigates the use of a regional

interagency team that integrates innovative practices in education, social services, and medical support for

transition aged students. Research Study 2 builds off of innovative practices in recreation and volunteer

training to examine a model that integrates CYDS into community recreation activities. Research Study 3

models the integration of a reliable screening mechanism into the flow of activity at a busy, urban neighborhood health center. The RRTC is a collaboration of the Massachusetts Consortium for Children with Special

Health Care Needs, the Parent Advocacy Coalition for Educational Rights (PACER), and six Multicultural

Community Based Organizations that serve traditionally underrepresented communities. RRTC staff and

collaborators include nationally and internationally known experts in pediatrics, nursing, public policy,

education, family advocacy, rehabilitation, and community organizing.
4-10 NIDRR Program Directory FY 2006 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Minnesota

Research and Training Center on Community Living (RTC/CL)

University of Minnesota

The Institute on Community Integration

204 Pattee Hall, 150 Pillsbury Drive, SE

Minneapolis, MN 55455

lakin001@umn.edu

rtc.umn.edu

Principal Investigator: Charlie Lakin, PhD 612/624-5005

Public Contact: Sheryl Larson, PhD 612/625-6024; Fax: 612/625-6619

Project Number: H133B031116

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 03 $750,000; FY 04 $750,000; FY 05 $750,000; FY 06 $750,000

Other Funding: FY 04 $1,340,000 FY 04 $300,000 (Administration on Developmental Disabilities),

$70,000 (Centers for Medicare and Medicaid Services), $295,000 (NIDRR Field Initiated Projects),

$300,000 (Illinois Planning Council on Developmental Disabilities), $25,000 (Centers for Disease Control

and Prevention, Center on Birth Defects and Developmental Disabilities), $300,000 (College of Direct

Support web-based training program), $30,000 (Partners in Community Supports), $60,000 (University of

Minnesota)

Abstract: The Center conducts research, training, technical assistance, and dissemination to enhance

inclusion and self-determination of citizens with intellectual and developmental disabilities (ID/DD). The

research program has six outcome areas: policy studies, database supports for full participation, selfdetermination and consumer-control, workforce development, and quality assessment and improvement

systems. The research program within the priority areas includes: (1) research syntheses of the state of

knowledge and practice; (2) secondary analyses of high quality, topically relevant national and state data

sets; (3) case studies of best practices; (4) evaluation of demonstration efforts to improve policy and

practice; (5) survey and interview studies of critical issues; and (6) group process studies with key constituencies. An integrated intramural training program addresses the development of skilled disability researchers

and community service professionals. Outreach training programs provide training and technical assistance

to agencies and individuals providing support to people with ID/DD, including members of their families.

The College of Direct Support provides on-line interactive multi media training to thousands of direct

support professionals across the US. Outreach programs include conferences and workshops for a wide

variety of national, regional, and state audiences, a state-of-the-art conference, annual “Reinventing Quality”

conference, and intensive technical assistance with community organizations, including advocacy and selfadvocacy organizations. The Center disseminates practical information to targeted audiences through its

internal publication program that includes: IMPACT, Policy Research Brief, DD Data Brief, and Frontline

Initiative. It maintains high standards for scholarly productivity and publication through books, journal

articles and technical reports. About 18,000 people visit Center websites each month for access to view

publications or other information on best practices in person-centered services (“QualityMall.org”), national

statistics on services and expenditures, the direct support workforce, and other contemporary topics.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-11

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center for Community Integration

for Individuals with Disabilities, Strengthening Family and Youth

Participation in Child and Adolescent Mental Health Services

Portland State University

Regional Research Institute

School of Social Work

P.O. Box 751

Portland, OR 97207-0751

janetw@pdx.edu

www.rtc.pdx.edu

Principal Investigator: Barbara Friesen, PhD 503/725-4166

Public Contact: Donna Fleming, Center Manager 503/725-8313; Fax: 503/725-4180

Project Number: H133B040038

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $835,000; FY 05 $835,000; FY 06 $835,000

Abstract: This project conducts research, training, and technical assistance activities to study and promote

effective, community-based, culturally competent, family-centered, individualized, and strength-based

services for children and youth with emotional or behavioral disorders and their families. Projects include:

(1) “Community Integration (CI) of Transition-Age Youth,” designed to gain understanding of CI and related

concepts from the perspectives of transition-age youth, young adults, and caregivers; (2) “Transforming

Futures: Research on Expanding the Career Aspirations of Youth with Mental and Emotional Disorders,”

explores transition experiences; (3) “Partnerships in Individualized Planning” develops an intervention to

increase youth and family member participation in the individualized service planning process, a conceptual

framework for understanding recovery in children’s mental health, and ways to reduce stigma; (4) “WorkLife Integration” addresses CI for adult caregivers of children and youth with emotional disorders, specifically around maintaining employment. It is designed to influence human resource professionals’ practice, and

aims to reduce stigma and increase organizations’ family friendliness; (5) “Transforming Transitions to

Kindergarten” focuses on the preschool-kindergarten transition for young children with challenging behaviors. It develops and tests an intervention promoting children’s successful school entry while empowering

caregivers; (6) “Practice-Based Evidence: Building Effectiveness from the Ground Up,” conducts a case

study in partnership with a Native American youth organization and the National Indian Child Welfare

Association, and addresses the need to study practices that are believed to be helpful, but for which little

evidence exists.
4-12 NIDRR Program Directory FY 2006 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Pennsylvania

Rehabilitation Research and Training Center Promoting Community

Integration of Individuals with Psychiatric Disabilities

University of Pennsylvania

Collaborative on Community Integration

3535 Market Street, 3rd Floor - CMHPSR

Philadelphia, PA 19104

pennrrtc@mail.med.upenn.edu

www.upennrrtc.org

Principal Investigator: Mark Salzer, PhD

Public Contact: Katy Kaplan 215/746-6713; Fax: 215/349-8715

Project Number: H133B031109

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $749,212; FY 04 $749,816; FY 05 $749,803; FY 06 $749,713

Abstract: The goal of this Center is to insure that people with psychiatric disabilities not only move from

institutional care to more integrated settings but also are free to choose to participate in a wide range of

roles in their communities. The Center’s five year mission focuses on three core areas: (1) Factors Associated with Community Integration develops a coherent conceptual framework for community integration and

identifies key factors, intervention models, and appropriate instrumentation and research methodologies; (2)

Policies Associated with Community Integration identifies, develops, and assesses the effectiveness of a

range of public policies and system strategies promoting community integration and engage key stakeholders

in learning about and utilizing the Center’s findings; and (3) Intervention Supports that Assist Community

Integration identifies, develops, and assesses the effectiveness of support service interventions promoting

community integration, and provides training, technical assistance, and dissemination based on those initiatives to change behaviors and practices of key stakeholders. This Center capitalizes upon the longstanding

history of collaboration among three Philadelphia-based central partners: The University of Pennsylvania, the

peer-operated Mental Health Association of Southeastern Pennsylvania, and The Matrix Center at Horizon

House, Inc.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-13

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Texas

Rehabilitation and Training Center on Community Integration of Persons

with TBI

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

2455 South Braeswood

Houston, TX 77030

asander@bcm.tmc.edu

struchen@bcm.tmc.edu

www.tbicommunity.org

Principal Investigator: Angelle M. Sander, PhD; Margaret Struchen, PhD

Public Contact: 713/383-5644 (Sander); 713/383-5645 (Struchen)

Project Number: H133B031117

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 03 $799,960; FY 04 $799,968; FY 05 $799,936; FY 06 $799,450

Abstract: The research program of this project includes: development and evaluation of a social network

mentoring program; an investigation of racial/ethnic differences in acceptance of disability, community

integration needs, barriers, and supports; a distance learning program to train family members in rural areas

as paraprofessionals; assessment of employers’ attitudes toward persons with TBI and a pilot educational

intervention to reduce attitudinal barriers in the workplace; a randomized clinical trial to assess the effectiveness of a brief substance abuse intervention; a qualitative exploration of intimacy following TBI; and a study

investigating the role of social communication abilities and environmental factors on social integration.

Training projects include: a National Information, Educational Resources, Dissemination, and Technical

Assistance Center for the Community Integration of Individuals With TBI; development of educational

materials for increasing community awareness of TBI and reducing attitudinal barriers; adoption of a social

action network program from disability studies for improving positive identity; partnering with artists in the

community to implement a Center for Creative Expressions for Persons with TBI; training of community

healthcare professionals in the community integration needs of persons with TBI; a rehabilitation fellowship

in community integration of persons with TBI; and a state-of-the-science conference and book on community integration.
4-14 NIDRR Program Directory FY 2006 - Participation and Community Living

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Iowa

Asset Accumulation And Tax Policy Project

University of Iowa College of Law

Law, Health Policy, and Disability Center

100 Gilmore Hall

Iowa City, IA 52242

peter-blanck@uiowa.edu

disability.law.uiowa.edu/lhpdc/projects/assetdevtaxpol.html

Principal Investigator: Peter D. Blanck, PhD, JD 319/335-9043

Public Contact: Michael Morris, JD; James Schmeling, JD 202/521-2930 (Morris); 319/335-8458

(Schmeling); Fax: 319/335-9764

Project Number: H133A031732

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 03 $299,991; FY 04 $299,991; FY 05 $299,991; FY 06 $299,991

Abstract: This project develops and disseminates a new and comprehensive body of knowledge to multiple

target audiences nationwide to improve the economic independence, social empowerment, and community

integration of persons with disabilities. Researchers examine systematically the relationship between tax

policy and asset accumulation for persons with disabilities, and resultant improvements in economic and

community integration. The project investigates the impact of multiple intervention strategies — including

financial education, matched savings accounts, expanded financial services, and increased use of state and

Federal tax incentives for asset and community economic development — in six states and ten pilot demonstration sites nationwide on youth in transition and adults with disabilities. This project is a collaborative

effort of The Law, Health Policy, and Disability Center at the University of Iowa College of Law, Southern

New Hampshire University School of Community Economic Development, the National Federation of

Community Development Credit Unions, the World Institute on Disability, and the National Cooperative

Bank Development Corporation.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-15

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Kansas

The Impact of Interventions on Self-Determination and Adult Outcomes

University of Kansas

Kansas University Center on Developmental Disabilities/Beach Center on Disability

1200 Sunnyside Avenue, Room 3136

Lawrence, KS 66045-7534

wehmeyer@ku.edu

www.beachcenter.org

Principal Investigator: Michael Wehmeyer, PhD (University of Kansas); Laurie Powers, PhD (Portland

State University); 785/864-7605

Public Contact: 785/864-0723; Fax: 785/864-3458

Project Number: H133A031727

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $299,313; FY 04 $299,967; FY 05 $299,616; FY 06 $299,744

Abstract: This project conducts three semi-longitudinal, national studies examining the impact of interventions to promote the self-determination of students with high incidence and low incidence disabilities, and

students who are at-risk for less desirable adult outcomes on student self-determination, adult outcomes,

and quality of life. In all three studies, participants receive instruction for several years (with annual measurements) and adult outcomes are measured during the next two years, post-high school. The first study

focuses on students with learning disabilities, mild intellectual disabilities, and emotional/behavioral disorders.

The second study focuses on students with moderate to severe intellectual disabilities, multiple disabilities,

and severe autism. The third study focuses on students with disabilities from foster systems or juvenile

justice systems. For the school-based studies of students with learning disabilities and mental retardation,

participating school campuses are randomly assigned to treatment conditions. An alternate treatment-control

group design ensures that each site obtains training in self-determination related supports, but one level of

training does not involve direct instruction with students. Research follow-up in the first and second years

post-high school for all study participants will yield information about the impact of services and instruction

using self-determination and student involvement during high school and in transition services on the study

sample. This investigation will provide a firm evidence base for student-directed learning and self-determination in school and community resource settings.
4-16 NIDRR Program Directory FY 2006 - Participation and Community Living

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Oregon

TBI Transition System (T-BITS): Systematic Hospital-to-School

Transition for Students with Traumatic Brain Injury

Western Oregon University

The Teaching Research Institute

99 West 10th Avenue, Suite 370

Eugene, OR 97401

glanga@wou.edu

Principal Investigator: Ann E. Glang, PhD

Public Contact: 541/346-0594; Fax: 541/346-0599

Project Number: H133A060075

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 06 $300,000

Abstract: Due to the absence of effective procedures for transitioning students from hospital to school,

many students with traumatic brain injury (TBI) who need specialized services are not identified for special

education. This lack of identification can lead to inappropriate services, and perpetuates the lack of awareness of TBI among school professionals. This project utilizes a systematic approach to developing, testing,

and disseminating a comprehensive hospital-school transition intervention, called the TBI Transition System

(T-BITS). Researchers evaluate the effectiveness of the T-BITS intervention, which includes referral to a

school-based transition specialist, long-term tracking of student performance, and parent advocacy training,

in a three-phase research plan. Following the Phase I development period involving focus groups and

interviews with parents, hospital staff, and school personnel, and a year-long pilot test (Phase II), the

project evaluates the effectiveness of the transition intervention in a multi-site randomized control trial (Phase

III).
NIDRR Program Directory FY 2006 - Participation and Community Living 4-17

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Oregon

Identification and Reporting of Violence By People with Disabilities

Oregon Health and Science University

School of Nursing

3181 SW Sam Jackson Park Road

Portland, OR 97201

powersl@pdx.edu; oschwald@pdx.edu

selfdeterminationohsu.org

Principal Investigator: Mary Ann Curry 503/494-8655

Public Contact: Mary Oschwald, PhD 503/725-9602; Fax: 503/725-4180

Project Number: H133A031724

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $300,000; FY 04 $300,000; FY 05 $300,000; FY 06 $300,000

Abstract: The purpose of this project is to reduce the prevalence of violence against people with disabilities. People with disabilities are at substantially higher risk for violence, abuse, and criminal victimization than

the general population. The identification and reporting of violence typically involves individuals’ selfidentifying as victims and accessing safety and reporting information and resources, as well as the availability

of sensitive and accessible reporting methods. The goal of this project is to improve the identification,

reporting, and response to violence against persons with disabilities living in the community by: (1) validating

the efficacy of a culturally sensitive approach to promote violence screening, safety behaviors, disclosure

and reporting by women with disabilities; (2) increasing knowledge of the extent to which current crime

reporting methods incorporate disability status and accommodation information, and the barriers faced by

police jurisdictions across the nation in documenting and facilitating crime reporting by persons with disabilities; and (3) identifying practices and policies that promotes and support violence disclosure and reporting

by individuals with disabilities.
4-18 NIDRR Program Directory FY 2006 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Arizona

The Texas Trilingual Initiative: Providing Effective Communication for

Persons who are Deaf or Hard of Hearing and Hispanic

University of Arizona

National Center for Interpretation

Geronimo Building, 2nd Floor

Tucson, AZ 85721

pgatto@email.arizona.edu

nci.arizona.edu

Principal Investigator: Roseann Gonzalez, PhD; Paul Gatto, CPhil

Public Contact: Paul Gatto, CPhil 520/621-3615; Fax: 520/624-8130

Project Number: H133G040115

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 04 $149,957; FY 05 $149,957; FY 06 $149,957

Abstract: The Texas Trilingual Initiative is an innovative and efficient Trilingual Interpreter Certification

Program that addresses an under-recognized “trilingual” language barrier (American Sign Language (ASL),

English, and Spanish) that affects deaf and hard of hearing Hispanics. This barrier presents access problems

for deaf and hard of hearing Hispanics, who may use only ASL but must communicate with both English and

Spanish speakers, often at the same time. This trilingual language barrier often affects Hispanic deaf and

hard of hearing children who learn ASL in school, but whose parents speak Spanish and whose service

providers speak English. Providing access to critical educational, health, legal, and social services requires

interpreters who can competently bridge these three differing cultures and languages. This certification

program — to be conducted in partnership with the Texas Department of Assistive and Rehabilitative

Services - Division for Deaf and Hard of Hearing Services — includes the development, piloting, and

validation of beginning and advanced level trilingual interpreting certification tests to assess interpreting

capability from Spanish/English to ASL and ASL to Spanish/English.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-19

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Curriculum on Abuse Prevention Education (CAPE)

World Institute on Disability

510 16th Street, Suite 100

Oakland, CA 94612-1502

marsax@wid.org

www.wid.org

Principal Investigator: Marsha Saxton, PhD

Public Contact: 510/251-4349; Fax: 510/763-4109

Project Number: H133G050321

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $149,670; FY 06 $149,670

Abstract: The goal of this project is to reduce the incidence of abuse of people with disabilities receiving

personal assistance in the community, through educating service providers and people with disabilities about

abuse awareness and abuse prevention strategies. The CAPE curriculum is comprised of one volume with

two sections: (1) a curriculum on abuse prevention for providers, and (2) a workbook for consumers. The

curriculum explores fundamental issues of abuse, best-practices training approaches, and personal narratives

of successful abuse interventions. The workbook offers highly motivational learning resources relevant to

daily life, such as learning games, cartoons, and empowering quotes from people with disabilities. This

mixed-media volume also includes one- or two-page modules for providers to easily adapt the learning

activities for use at disability community events, rehabilitation sessions, and independent living training.
4-20 NIDRR Program Directory FY 2006 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Homeless Mentally Ill: Strategies for Maintaining Residential Stability

University of Illinois at Chicago

Department of Occupational Therapy

1919 West Taylor Street, M/C 811

Chicago, IL 60612-7250

helfrich@uic.edu

Principal Investigator: Christine Helfrich, PhD 312/996-0942

Public Contact: 312/996-4626; Fax: 312/413-0256

Project Number: H133G040320

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 04 $149,976; FY 05 $149,994; FY 06 $149,998

Abstract: This project implements, evaluates, and disseminates a life skills intervention designed to increase

skills necessary for maintaining housing for 230 homeless adults with psychiatric disabilities to prevent their

return to the streets, reinstitutionalization, hospitalization, or jail. These skills include room and self-care

management, food management, financial management, and safe community participation. This three-year

project is conducted in two housing programs: supervised emergency housing and single room occupancy

housing with case management. The intervention was developed based on Empowerment Theory, the

Transtheoretical Model of Change, Social Learning Theory using a skills training approach, and the Model

of Human Occupation. The objective of this intervention is to increase the time an individual remains housed

and decrease the evictions that occur secondary to his/her inability to perform the skills and behaviors

necessary to maintain housing.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-21

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Pathways in Living: Increasing Mental Health Consumers’ Community

Integration Through Peer-Led Education

University of Illinois at Chicago

Center on Mental Health Services Research and Policy

104 South Michigan Avenue, Suite 900

Chicago, IL 60603

pickett@psych.uic.edu

Principal Investigator: Susan Pickett-Schenk, PhD

Public Contact: 312/422-8180, ext. 17; Fax: 312/422-0740

Project Number: H133G050217

Start Date: November 01, 2005

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $150,000; FY 06 $150,000

Abstract: This study examines the effectiveness of the Pathways in Living (PIL) peer-led education course,

an eight-week curriculum that uses the Pathways to Recovery self-help workbook in increasing mental

health consumers’ ability to identify and pursue the self-determined life goals that enable them to lead full

lives within the community. In PIL, trained instructors who are mental health consumers teach other consumers how to identify their strengths, set and achieve goals, and expand their social networks. A total of 336

mental health consumers in Chicago participate in the project. A wait-list control group design is used in

which 168 participants are randomly assigned to the PIL course (intervention group) and 168 participants

are assigned to a nine-month course waiting list (control group). Study participants complete three in-person

interviews that assess social support; emotional well-being; feelings of empowerment, hope, and self-stigma;

and identification and pursuit of self-chosen goals. Intervention and control group participants are interviewed at the same three timepoints: one month prior to the start of the PIL course for the intervention group

(study baseline for the control group), at the end of the PIL course (three months post-baseline for the

control group); and six months after the course has ended (eight months post-baseline for the control

group). Randomized regression models and content analyses are used to examine whether any significant

differences on the above measures occur between the groups and are maintained over time. Study results

provide important information on how peer-led programs increase community integration of mental health

consumers.
4-22 NIDRR Program Directory FY 2006 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Promoting Health, Empowerment, and Community Integration Among

People with HIV/AIDS: The Medication Adherence Program Study-II

(MAPS-2)

University of Illinois at Chicago

104 South Michigan Avenue, Suite 900

Chicago, IL 60603-5902

razzano@psych.uic.edu

www.psych.uic.edu/mhsrp

Principal Investigator: Lisa A. Razzano, PhD

Public Contact: 312/422-8180, ext. 20; Fax: 312/422-0740

Project Number: H133G060224

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 06 $147,341

Abstract: The Center on Mental Health Services Research and Policy at the University of Illinois at Chicago (UIC) is collaborating with the Chicago Department of Public Health (CDPH) to assist people with

HIV/AIDS live healthier, more productive lives. Clients at CDPH clinics are offered the opportunity to

participate in an innovative program designed to improve adherence to medication and treatment regimens,

promote physical health and wellness, cultivate consumer empowerment, and foster community integration.

This program examines the effects of peer-delivered medication support services compared to services

delivered by traditional medication specialists among people living with HIV/AIDS. The addition of the peer

component builds upon the success of the UIC Medication Adherence Program Study-I (MAPS-1), a

three-year, NIDRR-funded investigation of the impact of specialized medication adherence services provided to people living with HIV/AIDS.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-23

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Indiana

Integrating Assertive Community Treatment (ACT) and Illness

Management and Recovery (IMR) for Clients with Severe Mental Illness

(SMI)

Indiana University Purdue University Indianapolis (IUPUI)

Department of Psychology/ACT Center

Roudebush VA Medical Center

1481 West 10th Street (11H)

Indianapolis, IN 46202

mpsalyer@iupui.edu

psych.iupui.edu/ACTCenter

Principal Investigator: Michelle P. Salyers, PhD

Public Contact: 317/554-0000 ext. 4419; Fax: 317/554-0114

Project Number: H133G030106

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $149,458; FY 04 $149,559; FY 05 $149,900; FY 06 $0 (No-cost extension

through 4/1/2007)

Abstract: This project targets the subgroup of 20 percent of consumers with severe mental illness identified

with the most severe disabilities, that is, the subgroup most often excluded from rehabilitation services and

mental health treatment. The project involves: (1) the systematic integration and high-fidelity implementation

of two evidence-based practices for consumers with severe mental illness: assertive community treatment

and illness management and recovery; (2) enhancing integration by employing a consumer specialist on

treatment teams in a well-defined role; and (3) providing the first empirical test of a comprehensive package

of techniques designed to help consumers learn to manage their own illness and foster recovery. Outcome

measures include achievement of recovery goals, such as competitive employment and independent living, as

well as indicators of illness management, such as prevention of hospitalization.
4-24 NIDRR Program Directory FY 2006 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Kansas

Combining Technologies to Maximize Outcomes: Telemedicine and

Online Training Program for Parents of Children with Autism

University of Kansas

Schiefelbusch Institute for Life Span Studies

Juniper Gardens Children’s Project

650 Minnesota Avenue, 2nd Floor

Kansas City, KS 66101

lhpowell@ku.edu

www.jgcp.ku.edu

Principal Investigator: Linda S. Heitzman-Powell, PhD

Public Contact: 913/321-3143; Fax: 913/371-8522

Project Number: H133G060238

Start Date: October 01, 2006

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $149,824

Abstract: For children with autism, early, intensive, and comprehensive intervention is of paramount importance. Unfortunately, the excessive cost associated with these interventions prevents many children from

benefiting from them. While training parents to implement effective interventions can significantly reduce the

cost of services, limitations imposed by geographical location or transportation prohibits many families from

accessing appropriate training. The lack of access can have devastating effects on child-outcomes as well as

the overall quality of family life. This project addresses this access and training deficit by developing a

program that uses a Research-to-Practice Outreach Training model to teach parents of children with an

autism spectrum disorder how to implement empirically-based interventions with their children. Drawing

from the Participatory Action Research Model, consumer and administrative stake-holder feedback informs

Phase I development through the use of a focus group to determine critical aspects of training content.

Following the focus group, Phase II formative evaluation is conducted on a pilot version in which four

families complete an online tutorial and its associated telemedicine session. The complete program is developed, guided by results from the formative evaluation. In Phase III, parents of children with autism use

online tutorials to learn general information and concepts related to an intervention or treatment protocol

followed by either an onsite or telemedicine clinic intervention session. During the intervention session

parents practice the techniques discussed in that week’s online tutorials with their child while receiving

guidance and immediate feedback from a PhD or Master’s level clinician. Program effectiveness is evaluated based on: level of parental knowledge and skill fluency, child level of disability (e.g. the ICF) and

behavior, and reported family quality of life. After the initial evaluation, the sustainability of the intervention

model will be assessed.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-25

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Instrument to Measure Recovery-Promoting Competence among

Providers Serving Spanish Speaking Mental Health Consumers

Boston University

Sargent College

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue, West

Boston, MA 02215-1203

erogers@bu.edu

Principal Investigator: E. Sally Rogers, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133G060071

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $149,735

Abstract: The purpose of this project is to culturally adapt the Recovery Promoting Relationships Scale

(RPRS) for use in four Spanish-speaking cultures (that is, individuals of Mexican, Puerto Rican, Cuban, and

Central and Latin American descent). The resulting scale is an intervention blueprint designed to cut across

specific disciplines and services, to specify the skills and strategies needed to promote recovery and to

improve the expertise of providers serving Spanish-speaking consumers. This process helps address the

critical need for recovery-oriented mental health services that are research based, culturally informed, and

grounded in the perspectives of Latinos with psychiatric disabilities. Thus, the goals of this project are:(1) to

identify and refine the recovery-oriented competencies required of providers serving mental health consumers of four Spanish speaking cultures; (2) to adapt the RPRS to be culturally relevant to mental health

consumers of four Spanish-speaking cultures; (3) to pilot test the psychometric properties of the RPRS; (4)

to test the clinical utility of the RPRS; and (5) to systematically develop implications for practice, training of

practitioners, and policy, and broadly disseminate the results.
4-26 NIDRR Program Directory FY 2006 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Driving after Stroke

Wayne State University

Department of Psychology

5057 Woodward Avenue, 7th Floor

Detroit, MI 48202

rapport@sun.science.wayne.edu

Principal Investigator: Lisa J. Rapport, PhD

Public Contact: 313/577-7879; Fax: 313/577-7636

Project Number: H133G050134

Start Date: November 01, 2005

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $149,392; FY 06 $148,005

Abstract: The purpose of the study is to evaluate driving after stroke. Cessation of driving is among the

most functionally disabling consequences of stroke. Driving is integral to independence, community membership, and activities of daily living such as access to work, shopping, and health care. The primary target

population is adults who drove a motor vehicle prior to the onset of a stroke. The study samples 150 pairs

of survivors and their significant others, recruited at inpatient discharge and from the outpatient clinic of an

urban rehabilitation hospital. Barriers to driving, driving status, and community integration are assessed at six

months post stroke. A subsample of 90 survivors who seek to resume driving is also given a comprehensive

driving evaluation. The objectives of this study are to identify the barriers to driving after stroke and the

extent to which these barriers influence driving status (i.e., decision to drive), actual driving risk, and community integration. The project outcomes identify barriers to driving that are unwarranted or remediable and

facilitate decision-making based on valid information, both of which are important to improving functional

mobility and adaptation to changes associated with stroke. The long-term goal is the development of

interventions that maximize independence and community integration, while protecting public and survivor

safety.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-27

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Work Environment and Quality of Life Outcomes: A Comparison of the

Experiences of Formal and Informal Caregivers of Persons with Spinal

Cord Injuries

Wayne State University

Research Department

Rehabilitation Institute of Michigan

261 Mack Boulevard, Room 520

Detroit, MI 48201

cduggan@dmc.org

Principal Investigator: Colette Duggan, PhD 313/745-1070

Public Contact: 313/745-9735; Fax: 313/966-7502

Project Number: H133G060267

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $149,989

Abstract: For many persons with a spinal cord injury (SCI), assistance with activities of daily living and

instrumental activities of daily living is crucial to their long-term survival, independence, and productivity. The

goal of this qualitative investigation is to gain a better understanding of the work environments of SCI

caregivers and the micro-processes at work that produce impacts on caregivers’ appraisals of burden,

stress, physical health, and psychosocial well-being. The objective of the study is to document from a

contextual life perspective, the linkages between the specific demands of caregiving and its health consequences. The study targets three groups of SCI caregivers: unpaid (family) caregivers, paid caregivers hired

directly by the consumer, and paid employees of home health care agencies. The specific aims of the study

are to: (1) conduct a comparative study of these three caregiver groups; (2) analyze this information with

specific attention to the connections between aspects of the work environment, stress, physical health, and

psychosocial well-being, and (3) disseminate this information to SCI consumers and their families, rehabilitation researchers, and clinicians, and to agencies charged with the responsibility of establishing health care

policies.
4-28 NIDRR Program Directory FY 2006 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Minnesota

National Training Institute for Frontline Supervisors (NTIFF)

University of Minnesota

Institute on Community Integration

214B Pattee Hall, 150 Pillsbury Drive, SE

Minneapolis, MN 55455

larso072@umn.edu

rtc.umn.edu/ntiffs/main/index.asp

Principal Investigator: Sheryl Larson, PhD 612/624-6024

Public Contact: Nancy McCulloh 612/626-7765; Fax: 612/625-6619

Project Number: H133G030058

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06 $0 (No-Cost Extension

through 9/30/2007)

Abstract: This project refines, tests, and delivers a national train-the-trainer and technical assistance model

to assist community organizations that provide supports and services to persons with developmental and

other severe disabilities to recruit, retain, and train direct support and frontline supervisor staff members.

The model includes: (1) assisting organizations to assess their recruitment and retention challenges; (2)

providing web-based training on recruitment and retention strategies; (3) conducting 2 intensive train the

trainer institutes for 10-15 organization representatives; (4) supporting organizational representatives to

provide training to 70-100 frontline supervisors; (5) providing on-site as well as remote technical assistance

support and training to organizational representatives; (6) supporting technical assistance efforts by organizational representatives for frontline supervisors; (7) supporting ongoing follow-up measurement to assess

the effectiveness of interventions and to guide future intervention work; and (8) developing project products

and reports to share the project outcomes with policy makers, provider organizations, and other interested

persons.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-29

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

A Longitudinal Study of Psychosocial Outcomes and Subjective Quality

of Life Many Years After Traumatic Brain Injury

Mount Sinai School of Medicine

Department of Physical Medicine and Rehabilitation

One Gustave Levy Place, Box 1240

New York, NY 10029-6574

marcel.dijkers@mssm.edu

Principal Investigator: Marcel Dijkers, PhD

Public Contact: 212/659-8587; Fax: 212/348-5901

Project Number: H133G030026

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $149,999; FY 04 $149,999; FY 05 $149,999; FY 06 $0 (No-cost extension

through 9/30/2007)

Abstract: This project is a longitudinal study of individuals with TBI who are on average 18 years postinjury. Between 1994 and 1997, the Research and Training Center on the Community Integration of Individuals with TBI at Mount Sinai School of Medicine conducted extensive quality of life and health interviews

with over 800 individuals with TBI, spinal cord injury (SCI) and no disability (NO). The researchers for the

current project will re-interview these same individuals eight to nine years after their initial interview, using

most of the original measures. This project has three main objectives: (1) to document long-term psychosocial functioning post-TBI and its change over time; (2) to examine longitudinally subjective quality of life

post-TBI as a primary indicator of adjustment to TBI; (3) to determine the predictors of change in subjective quality of life. The comparison groups provide a means of examining whether the changes observed in

individuals with TBI reflect the unique experience of living with a TBI, the broader experience of living with

a disability (comparison with the SCI group), or the general challenges we all face in conducting our daily

lives (comparison with the NO group). Results of the study are disseminated through public conferences for

both professionals and consumers, through publications in journals for consumers and professionals, and

through the development of reports specifically targeted to individuals with TBI.
4-30 NIDRR Program Directory FY 2006 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

North Carolina

Participation in Family, School, and Community Activities as Pathways

to Adult Integration Study

Orelena Hawks Puckett Institute

128 South Sterling Street

Morganton, NC 28655

scarswell@puckett.org

Principal Investigator: Carol M. Trivette, PhD 828/432-0065

Public Contact: Sharon Carswell 828/432-0065

Project Number: H133G050164

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $149,980; FY 06 $149,980

Abstract: This project examines the factors that promote or impede successful inclusion of youth with

disabilities in postsecondary education, employment, and social activities. The specific goals for this study

are: (1) To determine the extent to which the frequency of participation in family, school, and community

activities promotes the integration and inclusion of young adults with disabilities into the work force as well

as educational and social opportunities; (2) to determine the extent to which the scope of participation in

school, community, and family activities promotes the integration of young adults with disabilities into the

work force as well as educational and social opportunities; (3) to disseminate research findings to the

appropriate institutions, professional organizations, and parent groups in such a way that implications of

practice are highlighted. Both quantitative and qualitative methodology are used as part of this research

design to assess the influences of participation in everyday family, school, and community life during preschool, elementary school, and secondary school, and the interactions between these sets of predictor

variables that influence post-secondary adult outcomes.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-31

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Ohio

Teen Online Problem Solving for Pediatric Brain Injury

Children’s Hospital Medical Center

Pediatric Rehabilitation

3333 Burnet Avenue; MLC 4009

Cincinnati, OH 45229-3039

shari.wade@cchmc.org

Principal Investigator: Shari L. Wade, PhD 513/636-7480

Public Contact: Fax: 513/636-7360

Project Number: H133G050239

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $149,629; FY 06 $148,735

Abstract: Traumatic brain injury (TBI) in adolescents is a significant stressor for both the teen and his or her

family. Existing interventions are rare and distance and finances can restrict access to treatment. The current

project addresses these needs by developing and piloting an innovative online intervention for adolescents

with TBI (Teen Online Problem Solving: TOPS). The TOPS intervention is adapted, based on input from

teens with TBI, from a recently developed online program for school-aged children with TBI and their

families. The project tests the TOPS intervention in a randomized trial comparing the effects of usual care to

TOPS on the following outcomes: (1) Adolescent problem-solving and communication skills; (2) adolescent

emotional/behavioral adjustment; (3) parent burden and distress; and (4) parent-teen conflict. TOPS makes

use of emerging technology to address the multifaceted needs of teens following TBI with the goal of

improving the teen’s social and emotional functioning, thereby enabling him or her to better negotiate the

complex transition to adulthood and independent functioning.
4-32 NIDRR Program Directory FY 2006 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Ohio

Web Therapy to Improve Outcomes after Traumatic Brain Injury in

Young Children

Children’s Hospital Medical Center

Pediatric Rehabilitation

3333 Burnet Avenue; MLC 4009

Cincinnati, OH 45229-3039

shari.wade@cchmc.org

Principal Investigator: Shari L. Wade, PhD

Public Contact: 513/636-7480; Fax: 513/636-7360

Project Number: H133G060167

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 06 $149,379

Abstract: Five million young children suffer from traumatic brain injury (TBI) each year resulting in new

child behavior problems, parental distress, and family dysfunction. Recent studies provide evidence that

online skill-building interventions can reduce caregiver distress and improve child adjustment following TBI.

This project adapts online family problem solving for families of young children with TBI (Positive Parenting

Plus or 3P) and compares it to an Internet resource comparison group (IRC) in a randomized clinical trial.

Participants include families of 40 children, aged 3-8 years, who experienced a moderate to severe TBI 1-

12 months prior to study participation. In 3P, a trained counselor guides families through a six-month

structured online parenting skills-building program via a website and one-on-one videoconference sessions.

The IRC group receives computers, high-speed Internet access, and links to brain injury information and

resources, but not the 3P website content or synchronous sessions. Primary outcomes, to be assessed preand post-treatment, include parenting behaviors (e.g., warmth, responsiveness, and criticism) and parentchild communication. Secondary outcomes include child behavior problems and parent psychological

distress. The overarching goal of this project is to reduce the risk of long-term behavioral problems and

disability in young children following TBI by equipping parents with increased coping and parenting skills in

a cost effective fashion.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-33

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Resilience in Students with TBI: A Longitudinal Investigation

Western Oregon University

The Teaching Research Institute

99 West 10th Avenue, Suite 370

Eugene, OR 97401

anng@oregon.uoregon.edu

Principal Investigator: Ann E. Glang, PhD

Public Contact: 541/346-0594; Fax: 541/346-0599

Project Number: H133G030179

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $149,950; FY 04 $149,999; FY 05 $149,966; FY 06 $0 (No-cost extension

through 9/30/2007)

Abstract: The project extends the work of Project PSO, a project investigating post-secondary outcomes

for young adults with TBI, tracking this sample into their early 20s, a time when the subjects are making

significant life adjustments in the areas of post-secondary education, employment, independent living, and

interpersonal relationships. The Project’s quantitative and qualitative data reveal that some of the 92 subjects appear to be resilient, achieving successful post-injury adjustments, while others are experiencing

difficulty, becoming dependent on family members for instrumental and social support. The data suggest that

access to specific types of educational interventions and support services account for these differences in

adjustment. In addition, this project investigates factors that facilitate and impede delivery of services and

support to young adults with TBI from key agencies, including VR, Social Security Administration, and state

social service agencies serving individuals with disabilities.
4-34 NIDRR Program Directory FY 2006 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

Stability of Vocational Interests Two Years after Spinal Cord Injury:

Relationship with Employment, Participation, and Subjective Well-Being

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

Research Office

77 President Street, Suite 117

PO Box 250700

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-5649

Project Number: H133G030151

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $149,944; FY 04 $149,913; FY 05 $149,352; FY 06 $0 (No-cost extension

through 09/30/2007)

Abstract: The primary objectives of this study are to identify how much interests change in the first two

years after SCI onset, factors related to change, and the extent to which interest type and interest change

are associated with employment, participation, and subjective well-being. Return to gainful employment has

been widely endorsed as fundamental rehabilitation goal after the onset of a SCI, yet employment rates for

people with SCI rarely exceed 30 percent. This high unemployment rate is generally attributed to the

dramatic impact of SCI on ability to perform job functions requiring physical strength and dexterity. However, successful employment is related to both the extent to which the individual is able to perform the

needed job functions and the degree to which the job environment and job tasks are intrinsically interesting

to the individual. Unfortunately, research has shown that SCI often occurs selectively to people whose

interests are in physically challenging activities that may no longer possible given the physical limitations

imposed by SCI. The impact of no longer being able to perform intrinsically rewarding activities not only

poses a threat to successful return to work, but also to overall participation in society and subjective wellbeing. This study lays a foundation for intervention strategies that maximize opportunities for participation

and help people with SCI to lead fulfilling and rewarding lives by helping rehabilitation professionals to

better understand the relationships of both interest type and interest stability with employment, participation,

and well-being.
NIDRR Program Directory FY 2006 - Participation and Community Living 4-35

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Outpatient Social Skills Training For Distressed Adolescent Burn

Survivors

University of Texas Medical Branch

815 Market Street

Galveston, TX 77550

pblakene@utmb.edu

Principal Investigator: Patricia E. Blakeney, PhD; Walter Meyer, MD

Public Contact: 409/770-6718; Fax: 409/770-6718

Project Number: H133G050079

Start Date: October 01, 2005

Length: 39 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 05 $150,000; FY 06 $150,000

Abstract: Previous studies suggest that a significant number of survivors of pediatric burn injuries have a

diminished quality of life as young adults. Based on social learning theory and supported by empirical data,

social skills deficits have been identified as a major impediment to maximum psychosocial adjustment for

many who have survived serious burn injury; this deficit is a particular handicap as the child progresses

through adolescence. A pilot study suggests that a four-day, intensive, residential social skills training program was of benefit to troubled teen burn survivors even one year after the training program was completed.

The residential format, however, is expensive and impractical. This project (1) cross-validates previous

findings that a social skills training program is beneficial, i.e. results in improved social competence and/or

diminished behavioral problems, at one-year post-intervention; and (2) tests the hypothesis that beneficial

effects can be maintained or amplified by modifying the format of the training to a schedule that more closely

resembles the usual outpatient clinical schedule. The goal of this project is to develop and validate an

efficient and relatively inexpensive intervention that can be utilized not only by burn-care teams but by

health-care professionals in other specialties that are concerned with assisting adolescents who are stigmatized by marred appearance or functional impairment related to a medical condition.
4-36 NIDRR Program Directory FY 2006 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Caregiver and Environmental Influences on Outcome for Infants and

Preschoolers with Traumatic Brain Injury

University of Texas Health Science Center at Houston

Department of Pediatrics

7000 Fannin, Suite 2401

Houston, TX 77030

Mary.R.Prasad@uth.tmc.edu

Principal Investigator: Mary R. Prasad

Public Contact: 713/500-3888

Project Number: H133G040279

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 04 $149,225; FY 05 $149,970; FY 06 $149,235

Abstract: This project is guided by a transactional model of development which postulates that a child’s

eventual outcome is a result of transactions between the child’s biological risk factors and a continuum of

environmental conditions. Project 1 assesses predictors of outcome in infants and preschoolers with moderate or severe TBI who are 6 to 47 months of age in relation to socio-demographically matched comparison

children. Child behavior, caregiver stress, and family functioning are expected to have a direct impact on

outcome from TBI; however, the effect of brain injury on developmental outcomes is also expected to be

partially mediated through the influence of these factors on the caregiver-child interaction. Project 2 pilots a

randomized, controlled, home-based, caregiver-focused intervention for infants and preschoolers with TBI

that enhances caregiver skills for stimulating cognitive development.
Disability Demographics

The ultimate goal of NIDRR’s disability demographics effort is to generate new

information that can be used by individuals with disabilities, service providers,

policymakers, and others working to identify and eliminate disparities in employment,

participation and community living, and health and function. NIDRR has long funded

studies that mine data to address the full range of social, health, and economic facets

of disability and that compare findings across data sources. There are significant

correlates with disability, such as aging; and there are a variety of links between

disability and other factors, including culture, race, and ethnicity. NIDRR also nurtures

methodological work that addresses identified gaps in data, such as the sparse

measurement of the interface between individual and environment.

Contents

Rehabilitation Research and Training Centers (RRTCs) 3

Rehabilitation Research and Training Centers (RRTCs) ............................................................................ 3

Disability and Rehabilitation Research Projects ........................................................................................ 6

Field Initiated Projects (FIPs) ................................................................................................................. 7

NIDRR Program Directory FY 2006 - Disability Demographics 5-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Measuring

Rehabilitation Outcomes and Effectiveness

Feinberg School of Medicine

Northwestern University

Center for Rehabilitation Outcomes Research

Rehabilitation Institute of Chicago

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

www.ric.org/research/outcomes/rrtc_projects.php

Principal Investigator: Allen W. Heinemann, PhD 312/238-2802

Public Contact: Trudy Mallinson, PhD 312/238-1623; Fax: 312/238-2383

Project Number: H133B040032

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 04 $700,000; FY 05 $700,000; FY 06 $700,000

Abstract: The purpose of this RRTC is to provide national leadership on the functional assessment, outcomes, and health policy issues facing the medical rehabilitation community and the diverse consumers it

seeks to serve. The Center conducts research; hosts forums for discussion; publishes in rehabilitation, health

policy, and consumer literature; trains researchers in rehabilitation-focused health services research; and

disseminates information to diverse consumer, provider, and academic audiences. The RRTC’s research

seeks to (1) enable comparison of functional status measures across post-acute settings so information can

be provided to consumers and other rehabilitation stakeholders about the outcomes and effectiveness of

various post-acute care settings; (2) develop an innovative measure of community participation in a meaningful, reliable, and valid manner in order to better describe the long-term outcomes of rehabilitation services; (3) increase the efficiency of outcome data collection so more resources can be directed to patient

care; (4) examine how format and presentation style influences patient understanding of rehabilitation quality

outcome indicators in order to provide information in ways that are helpful for consumers when selecting

rehabilitation services. The project uses recent developments in item response theory and computer adaptive testing and stakeholder input in test development, outcomes reporting, and quality indicator reporting.

The expected outcomes are a rational basis for provision of rehabilitation services post-acute care settings,

increased efficiency of data collection, a better measure of community participation, and outcome reporting

that is responsive to stakeholder needs. Dissemination activities include post-graduate and post-doctoral

training opportunities, conferences, and a website that provides information on measurement of rehabilitation

outcomes across the continuum of post-acute settings.
5-4 NIDRR Program Directory FY 2006 - Disability Demographics

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Policies Affecting

Families of Children with Disabilities

University of Kansas

Center for Research, Inc.

Beach Center on Disability

Haworth Hall, Room 3136

1200 Sunnyside Avenue

Lawrence, KS 66045-7534

turnbull@ku.edu

www.beachcenter.org

Principal Investigator: H.R. Turnbull, LLM; Ann Turnbull, EdD

Public Contact: H. R. Turnbull, LLM 785/864-7600; Fax: 785/864-7605

Project Number: H133B031133

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $749,951; FY 04 $749,960; FY 05 $749,997; FY 06 $749,899

Abstract: This center conducts eight research projects on the effects of the policies of governments,

systems, networks, and agencies on the family quality of life and community integration (FQOL/FCI) of

families who have children with developmental disabilities and emotional-behavioral disabilities or both.

Researchers identify four target populations: families, providers, policy-leaders, and networks (all at the

federal, state, and local levels). Three policy challenges are prisms through which the effects of policy on

families can be understood: early intervention, alternative schools, and consumer control of funding. For

each policy challenge, researchers inquire into whether the applicable federal and state policies and practices, and the applicable network policies, advance FQOL/FCI; whether the policies across education,

social services, and health care are mutually consistent with each other and advance FQOL/FCI; and

whether the practices of agencies in those systems advance FQOL/FCI. The center’s analytical framework

holds that the core concepts shape policies, policies shape services, policies and services should be coordinated and delivered through partnerships. Enhanced FQOL/FCI occurs when there is coherence among

core concepts, coordinated policies delivered through partnerships, and coordinated services delivered

through partnerships; and influencing factors must invariably be taken into account.
NIDRR Program Directory FY 2006 - Disability Demographics 5-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Demographics and

Statistics

Cornell University

Ives Hall, Room 331

Ithaca, NY 14853

ajh29@cornell.edu

www.disabilitystatistics.org

Principal Investigator: Andrew J. Houtenville, PhD

Public Contact: 607/255-5702 (V); 607/255-2891 (TTY); Fax: 607/255-3274

Project Number: H133B031111

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $750,000; FY 04 $750,000; FY 05 $750,000; FY 06 $750,000

Abstract: The RRTC on Demographics and Statistics (Cornell StatsRRTC) bridges the divide between the

sources of disability data and the users of disability statistics. The project conducts research exploring the

reliability of existing data sources and collection methods, and studies the potential to improve current and

future data collection efforts. In addition, the project utilizes existing data sources to provide a comprehensive and reliable set of statistics, and increase access to and understanding of how statistics can be used

effectively to support decision making. Cornell StatsRRTC works with key organizations to determine their

needs and helps them maximize the use of disability statistics in their ongoing efforts to improve the lives of

people with disabilities and their families. As members of the Cornell StatsRRTC, the American Association

of People with Disabilities, the Center for an Accessible Society, and InfoUse provide vital expertise and

resources needed to reach the users of disability data and statistics. The Cornell StatsRRTC includes

researchers from Cornell University, Mathematica Policy Research, the Urban Institute, and the Institute for

Matching People and Technology, all of which bring extensive expertise in working with and creating

sources of disability data.
5-6 NIDRR Program Directory FY 2006 - Disability Demographics

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

Emergent Disability, Systems Change, and Employment of People with

Disabilities

University of Massachusetts

Institute for Community Inclusion

100 Morrissey Boulevard

Boston, MA 02115

susan.foley@umb.edu

www.communityinclusion.org

Principal Investigator: Susan Foley, PhD; Doris Hamner, PhD 617/287-4317 (Foley); 617/287-4364

(Hamner)

Public Contact: Susan Foley, PhD 617/287-4317; Fax: 617/287-4352

Project Number: H133A021503

Start Date: December 01, 2002

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $300,000; FY 03 $300,000; FY 04 $299,640; FY 05 $299,640; FY 06

$299,640

Abstract: This project examines state service systems to document the impact of federal policies and

practices on systems change and how such changes affect people with disabilities. Research activities

include: (1) analysis of national, state, and local data collection systems and actual employment outcomes for

people with disabilities; (2) documentation of data sets being used by state agencies to measure effectiveness and how these could be used to examine outcomes for people with disabilities; and (3) examination of

how people with disabilities fare within the existing system and challenges they may face through direct

consumer research. The goals of the project are: (1) to develop a clear description and presentation of how

federal policies impact systems change efforts; (2) to identify how these policies and practices affect the

lives of people with disabilities; (3) to identify procedures for a more integrated approach to gathering data

that better explains the consumer outcomes of these services; and (4) to document how people with disabilities progress within the service system.
NIDRR Program Directory FY 2006 - Disability Demographics 5-7

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

A Study of Developmental Disability Service Utilization and Expenditures

in California

University of California, San Francisco

Department of Social and Behavioral Sciences

3333 California Street, Suite 455

San Francisco, CA 94118-0612

Principal Investigator: Charlene Harrington, PhD, RN

Public Contact: 415/476-4030

Project Number: H133G050358

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $83,482; FY 06 $67,427

Abstract: This project conducts a two-year secondary data analysis of over 200,000 individuals with

developmental disability (DD) living at home and in the community who are actively served by the California

regional center program. The study examines formal service utilization and expenditures for services for

individuals with DD. The study focuses on issues of equity in access to long term care services including

personal care services for individuals with DD. This analysis builds upon prior national studies of personal

assistance services (PAS) and studies of the predictors of long term care utilization and expenditures.

Researchers describe the number and types of individuals with DD living at home or in the community in

California in terms of their predisposing socio-demographic characteristics (e.g. age, gender, race/ethnicity,

language), enabling factors (e.g. living arrangement, income, Medicaid eligibility, and location), and need

factors (e.g. physical abilities, cognitive functioning, and other conditions). The project examines the amount

and type of services and the costs of services (including residential care, group homes, day care, PAS, and

other services). Multivariate analyses are used to test hypotheses that factors other than needs are major

predictors of service use and costs of formal services for individuals with DD.
5-8 NIDRR Program Directory FY 2006 - Disability Demographics

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Using the U.S. Equal Employment Opportunity Commission (EEOC)

Employment Discrimination Charge Data System for Research and

Dissemination Purposes

Cornell University

Employment and Disability Institute

School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853

smb23@cornell.edu

www.ilr.cornell.edu/edi/p-eeoc.cfm

Principal Investigator: Susanne Bruyère, PhD

Public Contact: 607/255-9536 (V); 607/255-2891 (TTY); Fax: 607/255-2763

Project Number: H133G040265

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000

Abstract: Using data from the Equal Employment Opportunity Commission (EEOC) Charge Data System

(CDS), this project analyzes trends in employment discrimination charges related to the ADA and other

laws. The CDS collects data on employment discrimination charges covered under Title I of the ADA, as

well as data on charges related to other laws. It contains information on (a) the demographic characteristics

of charging parties, such as gender, racial and ethnic status, age, location, and type of disability (e.g., back

impairment, depression); (b) type of discriminatory behavior, such as refusal to hire, failure to provide

reasonable accommodation, unfair discharge, harassment; and (c) charge outcomes, such as withdrawal

with benefits, settlements, and other such outcomes. The project uses these data to explore trends over time

and across the states, and investigate whether these trends are related to changes in the composition of the

population with disabilities and changes in labor market conditions. Using regression analysis, it explores the

relationship of the ADA-related charge rates to state-level economic conditions, government program

participation by people with disabilities, and other state-level characteristics. It also examines the changes in

the composition of charges over time with respect to the characteristics of charging party, the size and

industry of the employer, the type of alleged discriminatory treatment, and the EEOC ratings (A, B, C); it

looks for the potential impact of Supreme Court decisions within changes in these compositional changes.

To achieve a better understanding of patterns in ADA-related charges, researchers seek input from and

work with the EEOC and selected disability advocacy organizations, such as the law firm of Powers, Pyles,

Sutter, and Verville; the American Association of Persons with Disabilities; and representatives of the

National Disability Rights Network.
Knowledge Translation

For NIDRR, knowledge translation (KT) encompasses the multidimensional, active

process of ensuring that new knowledge gained through the course of research

ultimately improves the lives of people with disabilities and furthers their participation

in society. KT involves not only knowledge validation and dissemination but also the

transfer of technology, particularly products and devices, from the research and

development setting to the commercial marketplace to make possible widespread

utilization of the products or devices.

Contents

Disability and Rehabilitation Research Projects ........................................................................................ 3

Utilization Projects................................................................................................................................ 13

NIDRR Program Directory FY 2007 - Knowledge Translation 6-3

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Alabama

National Spinal Cord Injury Statistical Center (NSCISC)

University of Alabama/Birmingham

SRC 515; 1717 Sixth Avenue, South

Birmingham, AL 35249-7330

nscisc@uab.edu

www.spinalcord.uab.edu/NSCISC

Principal Investigator: Yuying Chen, MD, PhD 205/934-3320

Public Contact: Vicki Farris 205/934-5049; Fax: 205/934-2709

Project Number: H133A060039

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 06 $625,000; FY 07 $625,000

Abstract: The National Spinal Cord Injury Statistical Center (NSCISC) at the University of Alabama at

Birmingham has been the home of the National Spinal Cord Injury Model Systems (SCIMS) Data Center

since 1983. The NSCISC continues and expands its current activities and implements innovative new tasks

to accomplish the following goals: (1) maintenance of the SCIMS database, (2) high-quality data in the

SCIMS database, (3) high quality data collected from database participants of all racial/ethnic backgrounds,

(4) rigorous SCIMS database research conducted by all investigators, (5) enhanced continuity of the

SCIMS database, and (6) improved database operations through collaboration. In particular, the project

takes advantage of the latest Internet and centralized database technology to rewrite the database software

from its current distributed format to a centralized web-based system, which will significantly improve the

capability to manage new data module projects, increase cost-efficiency, improve quality control, and

enhance data security. To promote best research practices across the SCIMS, the Center establishes an

annual online comprehensive training curriculum for SCIMS data collectors, conducts evaluative site visits,

publishes a guide regarding proper use of the database, and refines standards on culturally appropriate SCI

research. The project includes subcontracts with formerly funded SCIMS centers to continue data collection for patients previously enrolled in their research. The Center continues to benefit from the active involvement of persons with SCI and productive partnerships with other NIDRR-funded centers in the

design, implementation, and evaluation of these activities.
6-4 NIDRR Program Directory FY 2007 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

National Resource Center for Parents with Disabilities

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

tlg@lookingglass.org

www.lookingglass.org

Principal Investigator: Paul Preston, PhD

Public Contact: 510/848-1112 (V); 800/644-2666 (V); 800/804-1616 (TTY); Fax: 510/848-4445

Project Number: H133A040001

Start Date: January 01, 2004

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 04 $500,000; FY 05 $500,000; FY 06 $500,000

Abstract: The National Resource Center for Parents with Disabilities focuses on the 10.9 percent of U.S.

families with children in which one or both parents have a disability—nearly 9 million parents. The Center

provides: (1) accessible and disability-appropriate information regarding parenting with a disability to

parents, potential parents, disability advocates, and legal, medical, and social service providers; (2) training

to parents with disabilities, potential parents, and service providers; (3) technical assistance that increases

informed practice and informed decisions; (4) program consultation that increases local and regional services that are accessible and disability-appropriate. To accomplish these goals, project researchers: (1)

consolidate and disseminate information and resources, (2) synthesize and disseminate materials from other

agencies and organizations, (3) develop and disseminate new materials tailored to address the specific needs

of parenting with disabilities and service providers, (4) expand the national availability of training and technical assistance to parents with disabilities and service providers, and (5) develop curricula to train future

service providers. Parenting areas designated as highest priority are: custody, pregnancy and birthing,

adoption, adaptive parenting equipment, and general parenting information. The project is staffed by nationally recognized experts regarding parents with disabilities, the majority of whom are parents with disabilities

or family members of parents with disabilities.
NIDRR Program Directory FY 2007 - Knowledge Translation 6-5

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

Innovative Knowledge Dissemination and Utilization for Disability and

Professional Organizations and Stakeholders

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

psyrehab@bu.edu

Principal Investigator: Marianne Farkas, ScD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133A050006

Start Date: October 01, 2005

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 05 $498,878; FY 06 $493,698; FY 07 $499,966

Abstract: This project is working collaboratively with the NIDRR, professional and consumer organizations, and stakeholders to develop, test, and apply a process of research standards development, implementation, and related information dissemination strategies that allows end-users in the rehabilitation field to

make informed choices based on the perceived utility of the research available, and in doing so, promote

utilization of rehabilitation research. The project uses well-developed standards to determine which rehabilitation research results are of sufficient rigor to be worthy of dissemination. Thus establishing an ongoing,

scientific, easily accessible, central resource to help professionals utilize what works in the disability field.

The project has six specific goals: (1) Producing quality standards for rating rehabilitation research rigor and

meaning. A broad range of experts and various stakeholders participate in consensus building regarding

adapting existing standards for rating research rigor, and create standards for meaning (perceived relevance). In this way, information disseminated will not only be assessed as to its scientific rigor but also with

respect to its relevance and applicability to various end-users, thus promoting utilization of the research. (2)

Project staff, along with NIDRR staff, professional and constituent organizations, and other Knowledge

Translation projects assist in developing standard topic selection criteria and in selecting topical areas for

information products. (3) Producing relevant information products describing the quality and implications of

rehabilitation research studies based on the developed standards. Constituent organizations participate in

developing dissemination plans to translate research syntheses in the identified topical areas into information

products relevant for appropriate constituencies. (4) Creating and testing a prototype interactive website,

The Right to Know Clearinghouse, to implement innovative dissemination strategies for key groups. (5)

Evaluating the output, perceived utility, and outcomes of the Knowledge Translation project using the

NIDRR logic model. Evaluated outcomes include an increase in awareness of research among constituency

groups, an increase in understanding of research rigor and meaning among those groups, and an increase in

the use of research information by end-users. (6) Disseminating the project’s findings to stakeholders.
6-6 NIDRR Program Directory FY 2007 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Center for International Rehabilitation Research Information and

Exchange (CIRRIE-2)

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

515 Kimball Tower

Buffalo, NY 14214

ub-cirrie@buffalo.edu

cirrie.buffalo.edu

Principal Investigator: John Stone, PhD 716/829-3141, ext. 125

Public Contact: Marcia E. Daumen 716/829-3900, ext. 146; Fax: 716/829-2211

Project Number: H133A050008

Start Date: November 01, 2005

Length: 60 months

NIDRR Officer: Eva M. Gavillan, EdD

NIDRR Funding: FY 05 $500,000; FY 06 $500,000; FY 07 $500,000

Abstract: The Center for International Research Information and Exchange (CIRRIE-2) offers a comprehensive approach to address the needs of researchers, practitioners, and consumers for research-based

information from international sources. CIRRIE-2 objectives include: Expanding the existing Database of

International Rehabilitation Research; developing an online, multi-lingual, international encyclopedia of

rehabilitation in English, Spanish, and French in collaboration with the Quebec Institute for Physical Rehabilitation; sponsoring an international conference and workshops on the International Classification of

Functioning, Disability, and Health (ICF); creating a Community of Practice on the ICF; and cross mapping

ICF terms to the thesaurus that is used to search both CIRRIE and REHABDATA databases. CIRRIE-2

sponsors workshops on the ICF in cooperation with the American Psychological Association and the WHO

North American Collaborating Center (NACC), and plans an international conference on the ICF in Year 2,

in collaboration with the NACC. Additionally, CIRRIE develops new pre-service initiatives in the area of

cultural competence for disability service providers, including: Developing a textbook and two new monographs on cultural competence for disability service providers; and conducting an international conference

on Providing Culturally Competent Disability Services in collaboration with Toronto-based Joint Centre of

Excellence on Research and Immigration and Settlement. CIRRIE-2 supports collaborative activities

between the U.S. and other countries by conducting four types of international exchange programs: (1)

short-term exchanges of individuals, (2) institutional linkage exchanges, (3) a program for Minority Serving

Institutions, and (4) a program for information gathering for dissemination to US audiences.
NIDRR Program Directory FY 2007 - Knowledge Translation 6-7

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Research Utilization Support and Help (RUSH) Project

Southwest Educational Development Laboratory

211 East Seventh Street, Suite 448

Austin, TX 78701-3253

jwestbro@sedl.org

www.researchutilization.org

Principal Investigator: John Westbrook, PhD

Public Contact: 800/761-7874 (V/TTY); Fax: 512/476-2286

Project Number: H133A031402

Start Date: June 01, 2003

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 03 $350,000; FY 04 $350,000; FY 05 $350,000; FY 06 $350,000; FY 07

$350,000

Abstract: The RUSH project develops and tests models for increasing the effective use of NIDRR research results. The RUSH Project intends to assess utilization successes in terms of benefits produced for

intended user audiences including: people with disabilities and their families, disability researchers, and

disability service providers, among others. The goal is to expand awareness, strategies, and evaluation of

knowledge utilization outcomes among NIDRR-supported researchers in order to increase access and use

of research results by those who can benefit the most from them. The objectives for the RUSH Project are:

(1) to assess the use of and obstacles to the dissemination/utilization of NIDRR-supported disability research by a wide range of potential target audiences; (2) to develop a variety of strategies and approaches

designed to accommodate differing topics of disability research information and diverse target audiences; (3)

to demonstrate a variety of new strategies and approaches to improve/achieve utilization outcomes of

disability research findings; (4) to disseminate information about knowledge utilization models and their

associated effectiveness by topic, target audience, and level of knowledge transfer needed in order to

increase the use of NIDRR grantees’ research outcomes; (5) to provide new and current NIDRR researchers with information they can use to strengthen their dissemination and utilization approaches; and (6) to

provide technical assistance to NIDRR researchers to build understanding, skills, and resources in developing, implementing, and evaluating knowledge utilization models within NIDRR project designs.
6-8 NIDRR Program Directory FY 2007 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

National Center for the Dissemination of Disability Research (NCDDR)

Southwest Educational Development Laboratory

211 East Seventh Street, Suite 400

Austin, TX 78701-3281

lharris@sedl.org

www.ncddr.org

Principal Investigator: John Westbrook, PhD

Public Contact: Lin Harris, Information Specialist 800/266-1832 (V/TTY); Fax: 512/476-2286

Project Number: H133A060028

Start Date: January 01, 2006

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 06 $750,000; FY 07 $750,000

Abstract: The goal of the National Center for the Dissemination of Disability Research (NCDDR) is to

promote the utilization of research results developed through NIDRR grants/contracts. Major areas of work

of the NCDDR include: (1) Research designed to collect information that assists in identifying the needs and

most likely strategies that assist in matching dissemination practices with intended user audiences. Activities

include conducting annual surveys, focus groups, surveys, and annual reporting of state-of-the-art information about NIDRR grantees’ dissemination successes. (2) Demonstration conducted to determine the

effectiveness of new strategies and approaches in achieving intended dissemination and utilization outcomes.

Activities include developing and using innovative web-based mechanisms, increasing common portal access

to substantive English and Spanish language resources of grantees, and developing outreach strategies for

under-represented audiences. (3) Dissemination and Utilization implemented not to support the simple

distribution of materials and other resources but rather the use of research outcomes in meaningful ways by

those that can most benefit from their use. Activities include production of print and web-based informational products, networking of grantees to maximize outreach impact, and developing networks with a

variety of research stakeholder groups for information and strategy exchanges. (4) Technical Assistance

provided to NIDRR grantees to build understanding, skills, and resources related to the dissemination and

utilization of their disability research outcomes. Activities include providing onsite and offsite assistance in

planning effective dissemination efforts, providing direct assistance to grantees with targeted dissemination

efforts, and assisting in designing evaluation strategies to measure dissemination and utilization outcomes.
NIDRR Program Directory FY 2007 - Knowledge Translation 6-9

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Virginia

Disability and Business Technical Assistance Centers: Coordination,

Outreach, and Research Center

Virginia Commonwealth University

Department of Rehabilitation Counseling

1112 East Clay Street; P.O. Box 980330

Richmond, VA 23298-0330

btmcmaho@vcu.edu

www.adata.org

Principal Investigator: Brian T. McMahon, PhD

Public Contact: 804/827-0917; Fax: 804/828-1321

Project Number: H133A060087

Start Date: January 01, 2007

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 06 $849,957; FY 07 $849,968

Abstract: This coordination, outreach, and research center (CORC) expands and enhances the activities of

the regional system of Disability and Business Technical Assistance Centers (DBTACs), guided by the

principles of evidence-based practice and knowledge translation, with a dual emphasis on communities of

practice and demand-side job placement. The CORC objectives are to: (1) improve public access to ADA

information by creating a definitive ADA web site, which includes a compendium of DBTAC materials,

databases, publications, products, tools, and activities; (2) create a CORC Research Review Board to

coordinate, support, and review new evidence-based products and publications, including original CORC

research, and assess their effectiveness and impact on policy and practice; (3) increase the research capacity of the regional DBTACs network to both conduct and utilize quality research by modeling such behavior

and by providing direct and meaningful consultation to regional DBTACs to facilitate their success; (4)

coordinate dissemination of regional DBTAC and CORC publications and products in concert with appropriate NIDRR research and dissemination centers; (5) translate DBTAC evidence reports, publications, and

products into practice guidelines, quality improvement products, and technical assistance tools; and (6) host

three planning conferences with regional DBTACs in Project Years I, III, and V, and three research conferences in Project Years III, IV, and V in order to demonstrate the added value of evidence-based practice in

the DBTAC network. CORC activities include original research studies, training activities, dissemination

projects, technical assistance projects, and program evaluation.
6-10 NIDRR Program Directory FY 2007 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

Model Systems Knowledge Translation Center (MSKTC)

University of Washington

Center for Human Development and Disability; Center for Technology and Disability Studies

1959 NE Pacific Street, HSB BB-919; Box 356490

Seattle, WA 98195

msktc@u.washington.edu

msktc.washington.edu

Principal Investigator: Kurt Johnson, PhD

Public Contact: 206/543-3677; Fax: 206/543-4779

Project Number: H133A060070

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 06 $598,163; FY 07 $598,833

Abstract: The Model Systems Knowledge Translation Center (MSKTC) facilitates the dissemination of

research to practice and consumer education for the model systems programs in traumatic brain injury

(TBI), spinal cord injury (SCI), and burn injury. The MSKTC knowledge translation and dissemination

efforts focus on research conducted by the model systems programs, identified best practices, and clinician

and consumer education materials developed by the model systems. The MSKTC also works

collaboratively with members of the MSKTC Research Advisory Board and experts in TBI, SCI, and burn

injury to conduct systematic reviews of key areas of rehabilitation research relevant to the model systems

projects. The MSKTC is housed within the University of Washington’s Center for Technology and Disability

Studies in the Center for Human Development and Disability and builds on previously funded NIDRR

knowledge translation efforts.
NIDRR Program Directory FY 2007 - Knowledge Translation 6-11

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

EVIDAAC: A Database of Appraised Evidence in Augmentative and

Alternative Communication

Northeastern University

Department of Speech, Language, Audiology, and Pathology

151B Forsyth

Boston, MA 02115-5000

R.Schlosser@neu.edu

Principal Investigator: Ralf W. Schlosser, PhD

Public Contact: 617/373-3785; Fax: 617/373-8756

Project Number: H133G070150

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 07 $195,525

Abstract: This project develops EVIDAAC, an accessible and usable database of appraised research

evidence in augmentative and alternative communication (AAC) for practitioners (speech-language pathologists, occupational therapists, physical therapists, special educators, rehabilitation engineers, etc.), individuals using AAC, and their families. EVIDAAC provides access to pre-filtered evidence-based practice by

critically appraising studies (randomized control trials [RCTs], non-RCTs, case series, single-subject experimental designs) and systematic reviews. This saves time and reduces the skill-burden associated with having

to appraise evidence, a documented barrier to the utilization of EBP. EVIDAAC is developed in accordance with published quality criteria for health-related web sites using formative and process evaluation.

Accessible web design principles are integrated into the development of the database, with regular assessment using Web Accessibility Initiative principles and guidelines. Its usability is tested with rigorous technologies, including structured usability tasks in controlled laboratory situations and the determination of utilization

patterns in real-life circumstances via web-log analysis. Results gleaned feed back into improving the

database.
6-12 NIDRR Program Directory FY 2007 - Knowledge Translation

Utilization Projects Utilization Projects

Maryland

National Rehabilitation Information Center (NARIC)

HeiTech Services, Inc.

8201 Corporate Drive, Suite 600

Landover, MD 20785

naricinfo@heitechservices.com

www.naric.com

Principal Investigator: Mark X. Odum

Public Contact: Information Specialists 800/346-2742 (V); 301/459-5984 (TTY); 301/459-5900 (V);

Fax: 301/459-4263

Project Number: ED-05-CO-0007

Start Date: March 01, 2005

Length: 36 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 04 $680,000; FY 05 $792,000; FY 06 $809,003

Abstract: The National Rehabilitation Information Center (NARIC) maintains a research library of more

than 65,000 documents and responds to a wide range of information requests, providing facts and referral,

database searches, and document delivery. Through telephone and online information referral, NARIC

disseminates information gathered from NIDRR-funded projects, other federal programs, and from journals,

periodicals, newsletters, films, and videotapes. NARIC maintains REHABDATA, a bibliographic database

on rehabilitation and disability issues, both in-house and online. Users are served by telephone, mail, electronic communications, or in person. NARIC also prepares and publishes the annual NIDRR Program

Directory, available in database format from NARIC’s web site.
NIDRR Program Directory FY 2007 - Knowledge Translation 6-13

Utilization Projects Utilization Projects

Maryland

ABLEDATA

ORC Macro

8630 Fenton Street, Suite 930

Silver Spring, MD 20910

abledata@orcmacro.com

www.abledata.com

Principal Investigator: Katherine Belknap 301/608-8998, ext. 105

Public Contact: 800/227-0216 (V); 301/608-8998 (V); 301/608-8912 (TTY); Fax: 301/608-8958

Project Number: ED-02-CO-0038

Start Date: October 01, 2002

Length: 66 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 02 $516,829; FY 03 $589,408; FY 04 $635,313; FY 05 $635,313; FY 06

$687,885; FY 07 $350,963

Other Funding: FY 06 $40,000 (NIDRR Supplemental)

Abstract: This project maintains and expands the ABLEDATA product information database, develops

information and referral services that are responsive to the special technology product needs of consumers

and professionals, and provides the data to major dissemination points to ensure wide distribution and

availability of the information to all who need it. The ABLEDATA database contains information on more

than 34,000 commercially produced and custom-made assistive devices. Requests for information are

answered via telephone, mail, electronic communications, or in person.
6-14 NIDRR Program Directory FY 2007 - Knowledge Translation
ADA Technical Assistance Programs

The Americans with Disabilities Act (ADA) opens more opportunities for persons with

disabilities. It also places certain responsibilities on employers, transit and

communication systems, state and local governments, and public accommodations. To

assist covered parties to understand and comply with the ADA, NIDRR has funded a

network of grantees to provide information, training, and technical assistance to

businesses and agencies with duties and responsibilities under the ADA.

Contents

ADA Technical Assistance Projects......................................................................................................... 3

NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers 7-3

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region I - CT, ME, MA, NH, RI, and VT

New England Disability and Business Technical Assistance Center —

Region I

Adaptive Environments Center, Inc.

200 Portland Street, First Floor

Boston, MA 02114

ADAinfo@NewEnglandADA.org

adaptiveenvironments.org/neada/site/home

Principal Investigator: Oce Harrison, EdD, Project Director 617/695-1225, ext. 227

Public Contact: 800/949-4232 (V/TTY in CT, ME, MA, NH, RI, and VT); 617/695- 1225 (V/TTY);

Fax: 617/482-8099

Project Number: H133A060092

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,026,116

Abstract: The New England DBTAC provides technical assistance, training, and information dissemination

for Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. This DBTAC

continues these core services that are the bedrock of voluntary ADA compliance but also restructures the

program to be more responsive and rigorous with an expectation of improving employment outcomes for

people with disabilities. A set of partnerships and collaborations, led by the Center for Labor Market

Studies at Northeastern University, conducts evidence-based research with a set of additional collaborating

organizations to implement comprehensive intervention and descriptive research strategies. The target

populations for this DBTAC are students with disabilities and their diverse support services at institutions of

higher education, and employers in demand-driven, high growth industries in New England. Goals for this

DBTAC are to: improve understanding of rights and responsibilities under the ADA; identify innovative

approaches and tested solutions that increase employment; produce and disseminate a “Guide to New

England Jobs” for individuals with disabilities; publish results of findings in refereed journals; and utilize

networks of new collaborators to disseminate information, materials, and research findings.
7-4 NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region II - NJ, NY, PR, and VI

Disability and Business Technical Assistance Center — Northeast

Cornell University

Employment and Disability Institute

School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853-3901

northeastada@cornell.edu

www.northeastada.org

Principal Investigator: S. Antonio Ruiz-Quintanilla, Project Director 607/255-2132

Public Contact: 800/949-4232 (V/TTY, in NJ, NY, PR, and VI); 607/255-6686 (V/TTY); Fax: 607/

255-2763

Project Number: H133A060088

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,105,000

Abstract: The Disability and Business Technical Assistance Center - Northeast (DBTAC-Northeast)

serves Region II to ensure the full implementation of the ADA through its core activities: technical assistance,

training, information dissemination, and research. The DBTAC-Northeast target audiences include individuals with disabilities and their caregivers, employers, businesses, state and local government entities, and

educational institutions in Federal Region II (New York, New Jersey, Puerto Rico, and the US Virgin

Islands). Information dissemination activities include a comprehensive website, a newsletter, technical

bulletins, and materials dissemination through networks and regional partners. Technical assistance activities

focus on responding to requests for information received via an 800 phone line, submitted via the website,

and received through email. Training activities are comprehensive in both approach and delivery, designed to

meet the needs of educational organizations, employers, advocacy organizations, businesses, Title II organizations, individuals with disabilities, caregivers, and disability service organizations. Topics include advanced

ADA issues related to employment, physical and programmatic access, state and federal laws and codes

and relevant ADA court decisions, and accessible technology. Training is offered through a variety of openenrollment programs at the state and local levels as well as provided on-site. Lastly, the DBTAC-Northeast

team conducts targeted, rigorous research and evaluation activities designed to inform and develop innovative and effective approaches addressing critical disability questions to help ensure that services and interventions delivered by the DBTAC-Northeast are effective and relevant to the needs of the individuals and

communities it serves.
NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers 7-5

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region III - DC, DE, MD, PA, VA, and WV

Mid-Atlantic Disability Business Technical Assistance Center —

 Region III

TransCen, Inc.

451 Hungerford Drive, Suite 607

Rockville, MD 20850-4151

adainfo@transcen.org

www.adainfo.org

Principal Investigator: Marian S. Vessels, Project Director

Public Contact: 800/949-4232 (V/TTY, in DC, DE, MD, PA, VA, and WV); 301/217- 0124 (V/TTY);

Fax: 301/217-0754

Project Number: H133D010212

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,099,998; FY 02 $1,099,998; FY 03 $1,099,998; FY 04 $1,099,998; FY

05 $1,099,998; FY 06 $0 (No-cost extension through 09/30/2007).

Abstract: The Mid-Atlantic DBTAC provides technical assistance, training, and information dissemination

for Delaware, the District of Columbia, Maryland, Pennsylvania, Virginia, and West Virginia. Activities are

organized under two major goals: (1) provide technical assistance, training, and information dissemination

about the ADA; and (2) provide technical assistance, training, and information dissemination about accessible education-based IT. Individual activities to meet these goals and project objectives are designed to

build capacity among State and local agencies, including centers for independent living, so that the Center’s

impact and effectiveness is maximized. Approximately 20,000 individuals and organizations are directly

impacted through project activities each year.
7-6 NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region III - DC, DE, MD, PA, VA, and WV

DBTAC:Mid-Atlantic ADA Center

TransCen, Inc.

451 Hungerford Drive, Suite 700

Rockville, MD 20850-4151

adainfo@transcen.org

www.adainfo.org

Principal Investigator: Richard G. Luecking, PhD 301/424-2002

Public Contact: Marian S. Vessels, Project Director 800/949-4232 (V/TTY, in DC, DE, MD, PA, VA,

and WV); 301/217-0124 (V/TTY); Fax: 301/217-0754

Project Number: H133A060085

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,098,929

Abstract: The DBTAC:Mid-Atlantic ADA Center provides technical assistance, training, and information

dissemination for Delaware, the District of Columbia, Maryland, Pennsylvania, Virginia, and West Virginia.

The major goals of this DBTAC are to: improve the understanding by individuals and entities of their rights

and responsibilities under the ADA; build the capacity of local and state entities to provide technical assistance and training on the ADA and related topics; improve employment outcomes of people with disabilities;

and increase access by people with disabilities to lodging and other services from, as well as employment

opportunities within, the high growth hospitality industry. There are four major areas of activity: (1) training,

technical assistance, and dissemination to general ADA constituencies on all titles of the Act; (2) training and

technical assistance to individual statewide coalitions to increase the capacity of other organizations to

provide locally focused technical assistance on all titles of the ADA; (3) identification of problematic areas

where research and informational campaigns might aid in the avoidance of or solutions to problems associated with the ADA, especially in the high growth hospitality industry; and (4) research on organizational and

individual factors that affect decisions to provide reasonable accommodations and the resulting employment

outcomes.
NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers 7-7

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region IV - AL, FL, GA, KY, MS, NC, SC, and TN

Southeast Disability Business Technical Assistance Center — Region IV

Syracuse University

Burton Blatt Institute

900 South Crouse Avenue; Crouse-Hinds Hall, Suite 300

Syracuse, NY 13244-2130

sedbtacproject@law.syr.edu

www.sedbtac.org

Principal Investigator: Peter Blanck, PhD, JD; Shelley Kaplan; 315/443-9703 (Blanck); 404/385-0636

(Kaplan)

Public Contact: Shelley Kaplan, Project Director 800/949-4232 (V/TTY, in AL, FL, GA, KY, MS, NC,

SC, and TN); 404/385-0636 (V/TTY); Fax: 404/385-0641

Project Number: H133A060094

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,105,000

Abstract: The Southeast DBTAC provides technical assistance, training, and information dissemination for

Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, and Tennessee.

Through an ongoing systematic assessment, the SE DBTAC continues to meet ADA-related information,

training, and technical assistance needs of multiple public and private stakeholders through the provision of

five core services: (1) information dissemination, (2) education and training, (3) technical assistance, (4)

information referral, and (5) public awareness events. The SE DBTAC has developed an innovative research plan to extend the state of knowledge about employer corporate culture and business practices, and

ADA impact on civic action to reduce and eliminate barriers to full civic, social, and economic participation

for Americans with disabilities. The SE DBTAC is lead by a consortium that includes four nonprofit institutions: the Burton Blatt Institute of Syracuse University, Center for Assistive Technology and Environmental

Access at Georgia Institute of Technology, Living Independence for Everyone of Jackson, Mississippi, and

Partnerships in Assistive Technology of North Carolina.
7-8 NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region V - IL, IN, MI, MN, OH, and WI

DBTAC: Great Lakes ADA Center

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Room 405

Chicago, IL 60608-6904

gldbtac@uic.edu

www.adagreatlakes.org

Principal Investigator: Robin A. Jones, Project Director 312/996-1059

Public Contact: 800/949-4232 (V/TTY, in IL, IN, MI, MN, OH, and WI); 312/413- 1407 (V/TTY);

Fax: 312/413-1856

Project Number: H133A060097

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,105,000

Abstract: The University of Illinois at Chicago, Department on Disability and Human Development operates the Disability and Business Technical Assistance Center (DBTAC) for the Great Lakes Region to

promote awareness of the ADA to targeted audiences through provision of technical assistance, training, and

material dissemination regarding the ADA. In addition, the Center engages in rigorous research-related

activities that contribute to a research agenda focused on but not limited to (1) the employment of people

with disabilities, and (2) the impact that individual knowledge and experience with the utilization of technology in postsecondary education has on the employment outcomes of individuals with disabilities as they

transition from postsecondary education to employment. The Great Lakes DBTAC provides timely, responsive, and proactive services utilizing a comprehensive service delivery model. The technical assistance,

training, and information needs of the individual, employers, specifically those in high growth industries,

business, government, educational entities, and disabled veterans employment programs are a part of ongoing needs assessment, and programs and activities are tailored accordingly. The Center tracks emerging

issues which are of interest to its target audiences and develops strategies to address their informational and

technical assistance needs. Strategies include: (1) operation of a toll-free number for responding to questions

or providing referral; (2) enhancement of the Center’s existing network of individuals and organizations who

can provide on-site consultation, technical assistance, and training as needed; (3) training events and activities at the local, state, and regional level focused on raising awareness of the ADA and disseminating the

findings which result from the Center and its collaborators’ research-related activities; (4) identification and

dissemination of best practices related to the recruitment, hiring, and retention of qualified individuals with

disabilities by employers and employment training programs; and (5) utilization of technology to promote the

exchange of information including a web site, listservs, e-newsletters, multifaceted distance learning strategies and techniques, self-paced learning, and web-based assessment tools. Through partnerships and

collaboration at the local, state, regional, and national levels the Center maximizes resources to ensure that a

high quality and quantity of activity occurs. Collaborators include but are not limited to the network of

DBTACs, relevant NIDRR-funded projects, State Technology Act grantees, and Department of Labor
NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers 7-9

grantees (WIA, Small Business Development Centers, JAN, etc.), as well as employer and business

organizations such as the Business Leadership Network, Society of Human Resource Management, State

Chambers of Commerce, and National Federation of Independent Business chapters. In addition to these

groups, the Center continues to act as a catalyst for activities that take place at the local and state level

through collaboration between the business, government, and disability communities to promote awareness

and voluntary compliance with the ADA. At the regional level, the Center relies heavily on the guidance of

State Steering Committees and incorporates new structures to inform and direct the Center’s activities

including the newly established Regional Business Advisory Committee.
7-10 NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VI - AR, LA, NM, OK, and TX

Southwest Disability and Business Technical Assistance Center

(Southwest DBTAC) — Region VI

The Institute for Rehabilitation and Research (TIRR)

Independent Living Research Utilization (ILRU)

2323 South Shepherd Boulevard, Suite 1000

Houston, TX 77019-7024

dlrp@ilru.org

www.dlrp.org

Principal Investigator: Wendy Wilkinson, Project Director

Public Contact: 800/949-4232 (V/TTY, in AR, LA, NM, OK, and TX); 713/520-0232 (V); 713/520-

5136 (TTY); Fax: 713/520-5785

Project Number: H133A060091

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,104,007

Abstract: The Southwest DBTAC provides a comprehensive array of training, technical assistance, and

dissemination services on the ADA and other disability-related laws in the five states of Federal Region VI.

The goals of these activities are to improve the employment outcomes of individuals with disabilities and

maximize their full inclusion into society. Through a collaborative structure of partners, the Southwest

DBTAC provides an array of services including: (1) research activities that identify impediments to compliance with the ADA and individuals’ access to technology, postsecondary education, and the workforce, as

well as tested solutions and innovative approaches to eliminate these impediments; (2) training activities that

offer comprehensive, accurate, and timely information on the ADA’s requirements, developments in case

law, policy, and implementation to promote compliance with the ADA; (3) dissemination activities that

increase knowledge about the ADA and DBTAC services through an effective, coordinated resource

network for Region VI; and (4) technical assistance activities that respond to the needs of individuals and

entities on the ADA and foster the development of new and promising practices that can be shared with

others. SEDBTAC’s network includes such organizations as the New Mexico Technology Assistance

Project, the Southwest Education Development Laboratory, Arkansas Technology and Curriculum Access

Center, Bureaus of Apprenticeship Training or State Apprenticeship Councils in each state, Valley Association of Independent Living, North Harris College, and other organizations and businesses that have demonstrated success in improving the lives of individuals with disabilities.
NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers 7-11

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VII - IA, KS, MO, and NE

Great Plains ADA and Information Technology Center — Region VII

University of Missouri/Columbia

100 Corporate Lake Drive

Columbia, MO 65203

ada@missouri.edu

www.adaproject.org

Principal Investigator: Jim de Jong, Project Director

Public Contact: 800/949-4232 (V/TTY, in IA, KS, MO, and NE); 573/882-3600 (V/TTY); Fax: 573/

884-4925

Project Number: H133A060089

Start Date: October 01, 2006

Length: 5 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $458,330

Abstract: The Great Plains DBTAC provides technical assistance, training, and information dissemination

for Iowa, Kansas, Missouri, and Nebraska. The Center provides the core services of material dissemination, technical assistance and training, awareness to its target populations of people with disabilities, disability organizations, policy makers, public rehabilitation providers, employers, businesses, state and local

governments, educators, design professionals, legal professionals, and the media. In addition, the Center

includes a research model that can measure changes in employment, commerce, and community in terms of

accessibility, receptivity, and active participation. Research conducted by the Washington University School

of Medicine focuses on community participation and employment. The University of Kansas continually

reviews emerging literature and research findings to improve core services and research activities. Paraquad,

a Center for Independent Living, facilitates input from consumers at all stages of service provision and

research, and represents the perspective of the intended beneficiaries of the project, people with disabilities.

Additional quality assurance of the research and core services is provided by an Advisory Committee

representing all parts of the region and professional disciplines involved in this project.
7-12 NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VIII - CO, MT, ND, SD, UT, and WY

Rocky Mountain Disability Business Technical Assistance Center —

Region VIII

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

rmdbtac@mtc-inc.com

www.adainformation.org

www.adaportal.org

Principal Investigator: Robert H. Gattis, Jr., Project Director 719/444-0252

Public Contact: 800/949-4232 (V/TTY, in CO, MT, ND, SD, UT, and WY); 719/444- 0268 (V/TTY);

Fax: 719/444-0269

Project Number: H133D010204

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $849,716; FY 02 $849,157; FY 03 $849,576; FY 04 $849,993; FY 05

$849,942; FY 06 $0 (No-cost extension through 1/31/2007)

Abstract: The Rocky Mountain DBTAC provides technical assistance, training, and information dissemination for Colorado, Montana, North Dakota, South Dakota, Utah, and Wyoming. The project builds the

capacity for reaching every individual, business, public entity, and educational institution with training,

materials dissemination, and technical assistance on the ADA and educational-based IT accessibility. A

comprehensive program expands a collaborative network consisting of key agencies and organizations

throughout the region. This project also operates and maintains the ADA Impact Measurement System

(AIMS), a web-based system that collects customer survey data. This system allows the ten regional

DBTACs to evaluate the outcomes of the DBTAC program quantitatively. This project created and maintains the ADA Portal (www.adaportal.org) which is supported financially by all ten DBTACs. The Rocky

Mountain DBTAC has also created numerous resources including the “disability awareness” poster series;

ADA Quiz Book; and Access to Voting and Vital Signs pocket guides.
NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers 7-13

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VIII - CO, MT, ND, SD, UT, and WY

Rocky Mountain Disability Business Technical Assistance Center —

Region VIII

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

rmdbtac@mtc-inc.com

www.adainformation.org

www.adaportal.org

Principal Investigator: Patrick Going, Project Director

Public Contact: 800/949-4232 (V/TTY, in CO, MT, ND, SD, UT, and WY); 719/444-0268 (V/TTY);

Fax: 719/444-0269

Project Number: H133A060079

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,105,000

Abstract: The Rocky Mountain DBTAC provides technical assistance, training, and information dissemination for Colorado, Montana, North Dakota, South Dakota, Utah, and Wyoming. The project builds the

capacity for reaching every individual, business, public entity, and educational institution with training,

materials dissemination, and technical assistance on the ADA. MTC has developed a program of technical

assistance based on the concept of mass customization to address the specific needs of target groups across

the region. Training activities take advantage of technology and new theories of training to ensure maximum

impact. Dissemination efforts provide tailored materials that provide actionable information for the specific

needs of target groups. To inform the technical assistance delivered by the DBTAC and to produce evidence-based reports on ADA implementation, a team of research organizations from across the region

conducts a research agenda focused on improving employment outcomes for people with disabilities. The

research program is used to inform technical assistance efforts by assessing the efficacy of the DBTAC’s

core functions and translating new research results into the technical assistance process.
7-14 NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region IX - AZ, CA, HI, NV, and the Pacific Basin

Pacific ADA & IT Center (Pacific DBTAC) — Region IX

Public Health Institute

555 12th Street

Suite 130

Oakland, CA 94607-4046

adatech@pdbtac.com

www.pacdbtac.org

Principal Investigator: Erica C. Jones, Project Director 510/285-5600 (V/TTY)

Public Contact: 800/949-4232 (V/TTY, in AZ, CA, HI, NV, and the Pacific Basin); 510/285-5600 (V/

TTY); Fax: 510/285-5614

Project Number: H133D010209

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,450,000; FY 02 $1,450,000; FY 03 $1,450,000; FY 04 $1,450,000; FY

05 $1,450,000; FY 06 $0 (No-cost extension through 09/30/2007).

Abstract: The Pacific DBTAC provides technical assistance, training, and information dissemination for

Arizona, California, Hawaii, Nevada, and the Pacific Basin. The latest funding cycle includes a series of

innovative initiatives and approaches to enhance compliance with ADA rules and regulations. There is also

an integrated action plan to enhance the availability of accessible IT equipment in Federal Region IX,

primarily through a focus on educational institutions as key sites for adopting the principles of Section 508,

and for ensuring full access to IT for young people with disabilities. The Pacific DBTAC’s interdisciplinary,

multilevel management strategy ensures that all project objectives are tracked and attained and that Center

services are fully integrated and delivered in an effective, cost-efficient, and accessible manner. The DBTAC

provides quality training, federally approved materials, and technical assistance services to requesters who

seek support, advice, and information and it conducts proactive strategic outreach and education services

that promote adherence to ADA regulations and principles at all levels of society. Education-Based Information Technology, being a key focus, uses best practices to promote utilization throughout school systems.
NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers 7-15

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region IX - AZ, CA, HI, NV, and the Pacific Basin

Disability and Business Technical Assistance Center (DBTAC) —

Pacific ADA Center

Public Health Institute

555 12th Street

Suite 130

Oakland, CA 94607-4046

adatech@pdbtac.com

www.pacdbtac.org

Principal Investigator: Erica C. Jones, Project Director 510/285-5600 (V/TTY)

Public Contact: 800/949-4232 (V/TTY, in AZ, CA, HI, NV, and the Pacific Basin); 510/285-5600 (V/

TTY); Fax: 510/285-5614

Project Number: H133A060098

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,105,000

Abstract: The Pacific DBTAC provides technical assistance, training, and information dissemination for

Arizona, California, Hawaii, Nevada, and the Pacific Basin. The program places a special emphasis on

increasing employment, reasonable accommodation, and retention of persons with disabilities - particularly

through outreach to high growth industries - and on enhancing participatory/community living opportunities

for persons with disabilities. In addition to enhancements in established training, dissemination, and technical

assistance services, the program includes a research program designed to enhance compliance with ADA

rules and regulations, expand employment and community living for persons with disabilities, and make

significant contributions to the literature in the field. The research program includes two randomized, controlled trials operated by the Center in collaboration with the DBTAC Coordination, Outreach, and Research Center; a collaborative research initiative led by Cornell University that includes a partnership with

three additional DBTACs and the Society for Human Resource Management (SHRM); and two five-year

special initiatives operated in conjunction with the Center’s training and technical assistance programs - one

to test the effectiveness of selected on-line disability-related training modules and the other to develop

innovative outreach and training approaches directed toward the hospitality industry.
7-16 NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region X - AK, ID, OR, and WA

Disability and Business Technical Assistance Center (DBTAC) —

Northwest

Western Washington University

6912 220th Street SW #105

Mountlake Terrace, WA 98043

conrad.kuehn@wwu.edu

www.dbtacnorthwest.org

Principal Investigator: Kathe Matrone, PhD

Public Contact: 800/949-4232 (V/TTY, AK, ID, OR, and WA); 425/774-4446 (V); 425/771-7438

(TTY); Fax: 425/774-9303

Project Number: H133A060084

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,105,000

Abstract: The Northwest DBTAC provides information, training, and technical assistance on the ADA to

educational organizations, employers, advocacy organizations, state and local governments, disability service

organizations, parents, and individuals with disabilities in Alaska, Idaho, Oregon, and Washington. Core

services include: technical assistance provided by phone, Internet, email, and in person; information dissemination in electronic and print formats, including a comprehensive website, quarterly newsletter, etc.; education and training on various aspects of the ADA using a variety of modalities, including teleconferences,

web-based multimedia events, and face-to-face; and targeted research on interventions and strategies of

problematic areas identified through outreach activities, such as barriers to employment and enhancing

employment outcomes.
NIDRR Program Directory FY 2006 - ADA Technical Assistance Centers 7-17

ADA Technical Assistance Projects ADA Technical Assistance Projects

Virginia

National ADA Program Assistance Coordinator

CESSI

6858 Old Dominion Drive, Suite 250

McLean, VA 22101

adata@adata.org

www.adata.org

Principal Investigator: Jennifer Eckel

Public Contact: 703/448-6155 (V); 703/448-3079 (TTY); Fax: 703/442-9015

Project Number: ED-02-CO-0008

Start Date: May 03, 2002

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $557,883; FY 03 $577,566; FY 04 $597,152; FY 05 $617,737; FY 06

$639,328

Abstract: The role of the ADA Program Assistance Coordinator (PAC) is to enhance the performance of

the organizations that are members of NIDRR’s nationwide ADA Technical Assistance grant program.

These include ten regional Disability and Business Technical Assistance Centers (DBTACs), and the National Center for Accessible Information Technology at University of Washington (AccessIT). The Program

Assistance Coordinator conducts: (1) coordination services, (2) collaborative assistance, (3) public relations, and (4) reporting activities. In addition, the PAC organizes and manages the semi-annual Project

Directors’ meetings. It facilitates legal review of grantee generated materials and conducts periodic searches

for legal proceedings on the ADA and disability related laws in federal and circuit courts. The PAC identifies

and distributes appropriate materials from federal agencies, related NIDRR research projects, and private

and public sector organizations. As a gateway to the national ADA technical assistance grant program, the

PAC maintains a national Web site, develops and disseminates promotional materials, and provides the

DBTACs with daily news updates to assure they have timely information on disability related legislation.

Capacity Building for Rehabilitation Research and Training

In the arena of capacity building, NIDRR has focused its efforts on the personal and

professional development of scientists, advocates, and people with disabilities, and is

expanding this approach to include development of the capacity of institutions and

organizations, especially those that address the needs of underserved populations. At

the individual level, NIDRR focuses on capacity building to ensure a source of

researchers to carry out the research agenda. In addition, NIDRR capacity building at

this level enhances the ability of researchers to generate useful new knowledge. NIDRR

historically has sought to increase the number of individuals from underrepresented

groups in this effort, particularly those with disabilities. At the organizational or

systems level, NIDRR capacity building supports the framework for carrying out

individual level research work. At the systems level, all NIDRR programs may be said

to involve capacity building, in that NIDRR funding is intended to increase the capacity

of the field to conduct high quality research directed at its long-term goals and

objectives.

Contents

Rehabilitation Research and Training Centers (RRTCs) ............................................................................ 3

Disability and Rehabilitation Research Projects ........................................................................................ 4

Fellowships (Distinguished) ..................................................................................................................... 9

Fellowships (Merit)............................................................................................................................... 13

Advanced Rehabilitation Research Training Projects .............................................................................. 20

NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

University of Illinois at Chicago National Research and Training Center

on Psychiatric Disability

University of Illinois at Chicago

Center on Mental Health Services Research and Policy

1601 West Taylor Street, 4th Floor, M/C 913

Chicago, IL 60612

www.psych.uic.edu/uicnrtc

Principal Investigator: Judith A. Cook, PhD 312/422-8180, ext. 19

Public Contact: 312/422-8180, ext. 18 (V); 312/422-0706 (TTY); Fax: 312/422-0740

Project Number: H133B050003

Start Date: October 01, 2005

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $500,000; FY 06 $500,000

Other Funding: FY 05 $800,000 Centers for Mental Health Services (CMHS); FY 06 $800,000 CMHS

Abstract: The University of Illinois at Chicago National Research and Training Center on Psychiatric

Disability (UIC-NRTC) promotes access to effective consumer-centered and community-based practices

for adults with serious mental illness. The Center is conducting five rigorous research projects to enhance the

state of evidence-based practice (EBP) in this field: A randomized controlled trial (RCT) study of Wellness

Recovery Action Planning (WRAP) to gather evidence regarding its effectiveness; an RCT to evaluate the

effectiveness of BRIDGES, a 10-week peer-led education course designed to provide mental health

consumers with basic education about the etiology and treatment of mental illness, self-help skills, and

recovery principles; an RCT of peer support services delivered by Georgia’s Certified Peer Specialists

(CPS) at consumer-run Peer Support Centers in order to determine the outcomes of service recipients; a

self-directed care program in which adults with serious mental illnesses are given control of financial resources to self-direct their own recovery; and a project using data from 12 clinical trials studies of consumer-operated service programs to create a national data repository to promote research and develop

scholarship in this area. The Center also conducts state of the art training, dissemination, and technical

assistance projects designed to enhance the leadership skills of people with psychiatric disabilities, and

evaluate a self-advocacy skills training program delivered to clients of a large psychosocial rehabilitation

agency. Additional projects evaluate self-advocacy skills training programs and implement training programs

to prepare consumer leaders in the State of California to take part in systems change in their local communities. UIC-NRTC is embarking on an academic curriculum transformation project starting at UIC in the

medical, social, and behavioral sciences to incorporate principles of recovery and EBP for people with

psychiatric disabilities. The UIC-NRTC is designing and administering a no-cost, online certification program, providing comprehensive introduction of knowledge required by peer providers. Additionally, the

UIC-NRTC is providing training and developing projects and tools to assist individuals in recovery to gain

the skills necessary for community integration through enhancing the research capacity of three federallyfunded consumer-run Technical Assistance Centers. Finally, the UIC-NRTC is offering an annual series of

online workshops; web-based continuing education courses; and a state of science national conference

(2008) focusing on EBP, research implementation, consumer-centered systems, workforce development,

and other emerging trends.
8-4 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Connecticut

Building Research Capacity through Collaboration among American

Indian Tribes in Connecticut and Rhode Island

Mashantucket Pequot Tribal Nation

Matt’s Path

Mashantucket, CT 06339

vellien@mptn-nsn.gov

fwilkins-turner@mptn-nsn.gov

Principal Investigator: Valerie Ellien, PhD CRC

Public Contact: 860/396-2105; Fax: 860/396-2282

Project Number: H133A031706

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $294,057; FY 04 $336,824; FY 05 $349,984; FY 06 $329,797

Abstract: This project builds capacity among four American Indian Tribes to improve the quality of health

and disability service information available for Tribes in Connecticut and Rhode Island. Four objectives

achieves this goal: (1) to investigate access to, and acceptance rates for VR services, types of services

provided, and VR costs for American Indians with disabilities; (2) to ensure the optimal collaboration of

Connecticut and Rhode Island Indian Tribes and others in disability and rehabilitation research, (3) to

maximize potential for recruitment of American Indian researchers; and (4) to investigate and evaluate the

participation of American Indians in disability and rehabilitation research activities and direct service delivery,

and determine to what extent participation leads to improved VR outcomes. All staff was trained in the

Participatory Action Research Model, and Culturally Appropriate Research Methodology utilizing the

expertise of the American Indian Rehabilitation Research and Training Center at Northern Arizona University. An experienced senior rehabilitation researcher is used as mentor to the Research Coordinator, through

development of two surveys for data collection. Two graduate students analyze the data and serve as

mentors for the Research Technicians (Tribal Members) who are hired to collect the data within their own

communities. Data results are shared with each of the four participating tribes (Mashantucket Pequot,

Eastern Pequot, Schaghticoke, and Narragansett) and with the Connecticut Bureau of Rehabilitation Services through the Advisory Council of the Mashantucket Pequot Vocational Rehabilitation Program.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-5

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Center for Strategic Capacity Building on Minorities with Disabilities

Research

University of Illinois at Chicago

Department of Disability and Human Development (M/C 626)

1640 West Roosevelt Road

Chicago, IL 60608

www.uic.edu/orgs/empower

Principal Investigator: Fabricio E. Balcazar, PhD 312/413-1646

Public Contact: 312/413-1806 (V); 312/413-0453 (TTY); Fax: 312/413-2918

Project Number: H133A040007

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $600,000; FY 05 $600,000; FY 06 $600,000

Abstract: The Center for Capacity Building on Minorities with Disabilities Research (CBMDR) increases

the capacity of community-based organizations (CBOs like Centers for Independent Living and other

agencies) and State Vocational Rehabilitation Agencies (VR) to document the impact of their programs and

develop culturally competent services. The CBMDR utilizes participatory research methodologies to

promote organizational change. The Center’s mission is to promote positive rehabilitation outcomes for

minority individuals with disabilities at the national level. Center staff conducts participatory research and

demonstration projects in collaboration with interested agencies, engages in active dissemination efforts, and

provides state-of-the art training and technical assistance on cultural competence to professionals and

researchers in the field. Presently, there is a limited understanding of the relationship between minority and

disability status and how it affects an individual’s access to quality rehabilitation, technical training, or independent living services that will result in competitive employment and increased independence. In addition,

CBOs are under increased pressure from funders to use research methods to improve the quality of the

services they provide. The Center utilizes a participatory program evaluation model which actively involves

consumers and agency staff in the process of identifying service needs, selecting program goals, developing

a logic model for success, and implementing and evaluating change efforts to address critical needs and

improve services. From this perspective, participating agencies develop their capacity for effectively using

consumer input and program data to identify research questions and methods to improve services. In

addition, research projects examine various aspects of theory, methodology, measurement, and dissemination of information involving the study of underrepresented minorities with disabilities. Specifically, the

project studies issues related to racial identity and cultural mistrust in service provision to minority populations; reviews the cultural and linguistic appropriateness of commonly used evaluation instruments in VR

certification; develops standards for Culturally Competent and Linguistically Appropriate research and

services; and identifies preferred strategies for the dissemination of research findings and other relevant

information to researchers and service providers. Center staff is also invested in promoting cultural competence among researchers and practitioners from around the country. The research initiatives include both

quantitative and qualitative methodologies. Partnerships with universities, state VR agencies, and CBOs

maximize the outreach efforts and long-lasting effect of the center. The Center develops specific techniques

for ensuring that the information is disseminated in accessible formats to all stakeholders.
8-6 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Louisiana

Rehabilitation Research Institute for Underrepresented Populations

(RRIUP)

Southern University A&M College

Department of Rehabilitation and Disability Studies

229 Blanks Hall

Baton Rouge, LA 70813

kundusubr@aol.com

alodutta1992@aol.com

www.subr.edu/science/rehabcounsel/RRIUP/ResearchandTraining.htm

Principal Investigator: Alo Dutta, PhD

Public Contact: Madan Kundu, PhD 225/771-2819; Fax: 225/771-2293

Project Number: H133A031705

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $350,000; FY 04 $350,000; FY 05 $350,000; FY 06 $350,000

Abstract: The goal of this project is that of improving the quality and utility of research related to individuals

with disabilities from traditionally underserved racial/ethnic population to enhance knowledge and awareness

of issues related to these populations, to help maximize the full inclusion and integration of individuals with

disabilities into society, and to improve the effectiveness of services authorized under the Rehabilitation Act.

The objectives of this project are: (1) to expand the existing and proven work alliance of three minority and

two non-minority entities, e.g., Southern University, East Carolina University, Crownpoint Institute of

Technology, University of Memphis, and Independent Living Research Utilization respectively, for strengthening the disability-related multicultural research framework and improving long-term rehabilitation outcomes of culturally diverse groups; (2) to investigate, evaluate, and modify five measures to assess the

capacity and competence of the disability and vocational rehabilitation workforce to provide quality services

to individuals with disabilities from traditionally underserved racial and ethnic populations; (3) to investigate

and develop culturally appropriate research capacity and infrastructure building techniques to ensure the

optimal participation of minority entities and Indian tribes in disability and rehabilitation research; and (4) to

develop and evaluate outreach, recruitment, training, reinforcement, retention, and dissemination strategies

to enhance participation of students and investigators from traditionally underserved populations as rehabilitation researchers, administrators, and educators.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-7

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Toward Equity: Innovative, Collaborative Research on Interpreter

Training, DBT, and Psychological Testing

University of Rochester

Department of Psychiatry

Deaf Wellness Center

300 Crittenden Boulevard

Rochester, NY 14642

Robert_Pollard@urmc.rochester.edu

www.urmc.rochester.edu/dwc/scholarship/Equity.htm

Principal Investigator: Robert Pollard, PhD

Public Contact: 585/275-3544; Fax: 585/273-1117

Project Number: H133A031105

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $299,900; FY 04 $299,848; FY 05 $299,985; FY 06 $299,727

Abstract: The research activities of this project focus on three thematic categories: mental health interpreting, dialectical behavior therapy, and psychological testing. The interpreter training project builds upon the

Deaf Wellness Center’s (DWC) prior innovations in interpreter training and applies them to four geographically dispersed urban settings. A team of experts in the mental health interpreting field employs the DWC’s

demand-control schema approach and implements a five-month program of training and supervision with a

local interpreter pool. Dialectical behavior therapy (DBT) is a highly structured treatment approach focusing

on emotional regulation and behavioral self-control. The three-part DBT project adapts DBT materials and

methods to maximize treatment access and efficacy with three deaf consumer populations: those with

language skills, those with limited language, and those with comorbid psychiatric and substance abuse

problems. The Signed Paired Associates Test and the ASL Stories Test are tests of verbal learning and

memory for sign language users. The extensive data that exists at the DWC regarding the tests’ psychometric properties and clinical utility implications are analyzed. This research has implications for the assessment

of dementias, developmental disabilities, learning disabilities, etc. A second testing project is the development of a psychosis symptom rating scale. The goal is to produce a tool that clinicians can employ to reliably

and validly identify the nature and severity of psychotic symptomatology in deaf individuals. Finally, the

project includes a psychological testing casebook, written based on reviews of hundreds of DWC psychological testing case files. Most of the studies are multi-site, collaborative ventures.
8-8 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Minority Scholar/Champion Research Training Project

Texas Southern University

3100 Cleburne Avenue

Houston, TX 77004

www.tsu.edu/academics/continue/research/index.asp

Principal Investigator: Irvine E. Epps, EdD 713/313-7224

Public Contact: Leatrice Chacks 713/313-1041; Fax: 713/313-7579

Project Number: H133A031704

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $350,000; FY 04 $349,655; FY 05 $349,889; FY 06 $348,986

Abstract: The Minority Scholars/Champions Research Training Project develops, implements, and evaluates the effectiveness of a train-the-trainer “Scholar/Champion” model to facilitate increased and improved

vocational rehabilitation (VR)/disability research among the targeted Historically Black Colleges and Universities (HBCUs). More specifically, the project develops an innovative research infrastructure of institutional

“cores” that partner an HBCU, Texas Southern University (TSU), with a majority research institution,

Baylor College of Medicine (BCM). Together, these partner institutions create a collaborative research

infrastructure that increases research capacity and helps build an institutional research infrastructure at five

additional HBCUs in Texas. These “cores” are: (1) the Administrative, Planning, and Evaluation Core

directs the Center, selects Center participants, and supervises evaluation of all project activities, budgets,

and reports; (2) the Training Core uses innovative methods of onsite and off-site training to recruit, support,

and mentor minority investigators in the areas of research design, development, and implementation, including analysis of racial and cultural factors related to VR/disability research; (3) the Community Collaboration

and Dissemination Core partners with communities and VR/disability agencies to engage individuals with

disabilities in research and training, using a model of participatory action-oriented research, and disseminates

culturally-sensitive information related to VR/disability research to community groups, agencies, and VR/

disability researchers; and (4) the Research Core works with the HBCU Scholar/Champions to conduct

innovative and rigorous pilot research projects as well as write fully developed research proposals that

address racial disparities in VR/disability research.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-9

Fellowships (Distinguished) Fellowships (Distinguished)

Illinois

EMG Signal Processing Following Targeted Muscle Reinnervation for

Improved Myoelectric Prosthesis Control

Ping Zhou

345 East Superior Street, Suite 1406

Chicago, IL 60611

p-zhou@northwestern.edu

Principal Investigator: Ping Zhou

Public Contact: 312/925-5511

Project Number: H133F060029

Start Date: September 01, 2006

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 06 $75,000

Abstract: This study improves the control of myoelectric prostheses for upper limb amputees, especially for

individuals with high levels of amputations. The study combines two recent advances for improved myoelectric prosthesis control: (1) myoelectric pattern recognition, and (2) targeted muscle reinnervation, the latter

being a recent breakthrough in myoelectric control where additional control sites are created through

transfer of amputees’ residual nerves to spare muscles. High-density surface electromyography (EMG)

signals from the reinnervated muscles are recorded during various movements involving the amputated limb;

and state-of-the-art pattern recognition techniques, using different feature sets and classifiers, are applied to

the recorded surface EMG signals to determine if the movements can be reliably classified. This study

dramatically improves the dexterity of myoelectric prosthetic control for high levels of upper limb amputations by extracting more information from the new source EMG (achieved through targeted muscle reinnervation) using advanced signal processing systems. It also provides potential impact and clinical application of

multi-function myoelectric prostheses for individuals with all types of amputations.
8-10 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Fellowships (Distinguished) Fellowships (Distinguished)

Louisiana

The Conceptual Legacy of Beatrice Wright: Capturing its Manifestations

in Contemporary Rehabilitation Research and Practice

Henry McCarthy, PhD

Louisiana State University Health Sciences Center

Department of Rehabilitation Counseling

University College, 150 Allen Hall, Rm 136-B

Baton Rouge, LA 70803

hmccar@lsuhsc.edu

Principal Investigator: Henry McCarthy, PhD

Public Contact: 225/578-7388; Fax: 225/578-5762

Project Number: H133F040024

Start Date: August 15, 2004

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 04 $55,000; FY 05 $0 (No-cost extension through 8/14/2006); FY 06 $0 (Nocost extension through 1/31/2007)

Abstract: In its current Long-Range Plan, the National Institute on Disability and Rehabilitation Research

(NIDRR) highlighted that its research strategy would be undergirded by “the new paradigm of disability”

which was defined as “a conceptual foundation [that]...maintains that disability is a product of an interaction

between individual characteristics (e.g., conditions or impairments, functional status, or personal and socioeconomic qualities) and the characteristics of the natural, built, cultural, and social environments.” This

project’s objective is to advance the understanding and application of this paradigm of disability, which has

also been referred to as the ecological model as a way of emphasizing the interactive effects among the

many aspects of the lived experience of persons with a disability in our complex society. Based on the

attribution that this paradigm is rooted in the seminal work of Wright (1960) and her subsequent contributions (Wright, 1983, 1988), this project aims to clarify the connections between several core concepts in her

Gestalt psychology of disability and their expression in current rehabilitation research findings and practice

recommendations. Accepted methods of content analysis will be employed to identify and synthesize

evidence of Wright’s concepts, both theoretical and applied, in shaping disability policy, the literature and

curricula of rehabilitation education, and NIDRR-funded research. The end goal of increasing our appreciation of the origins and extensions of the ecological model is to enhance the academic and attitudinal preparation of rehabilitation professionals to better serve the disability community as attuned researchers, compassionate service providers, and passionate advocates.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-11

Fellowships (Distinguished) Fellowships (Distinguished)

Maryland

Demographic Soup: Disentangling the Conceptual, Political, and

Methodological Dimensions of Disability Statistics

Barbara Altman

14608 Melinda Lane

Rockville, MD 20853

Paul.Altman@verizon.net

Principal Investigator: Barbara Altman

Public Contact: 301/460-5963

Project Number: H133F060011

Start Date: December 01, 2006

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 06 $75,000

Abstract: There are variances in disability research including how information is obtained and converted

into useable data. This project brings together, in one document, the accumulation of knowledge on measuring disability in survey and census contexts. Through the incorporation of several methodologies including

historical review, analysis of political processes and decision-making, and complete examination of the

source, placement, and evaluation of disability measures currently in use, the book manuscript contributes to

the improvement of disability statistics, serving as a reference document to understanding the data that

exists. The book manuscript is divided into five sections: (1) examination of the political and historical

context, which includes chapters on the history of disability measurement; (2) examination of the

conceptualization and definition of disability, including chapters on the political definitions for programmatic

purposes and theoretical definitions; (3) examination of the science, purpose, and relationship between the

components of measurement, and the specific problems with measurement in relation to special populations

(i.e. children); (4) reviews of sample analysis and the use of data including sources of data, research questions, and special focus on measures used in special areas of research (i.e. aging and employment); and (5)

exploration of international measurement of disability and the role of the US in its development. Conclusions

include recommendations for improving and standardizing the measurement and data collection process.
8-12 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Fellowships (Distinguished) Fellowships (Distinguished)

Massachusetts

Factors that Influence Participation Outcomes Following Inpatient

Rehabilitation

Nancy K. Latham

103 Jackson St., Apt. 103

Cambridge, MA 02140

nlatham@bu.edu

Principal Investigator: Nancy K. Latham

Public Contact: 617/638-1988; Fax: 617/638-1999

Project Number: H133F060030

Start Date: January 01, 2007

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 06 $75,000

Abstract: This project explores the factors that contribute to improving participation outcomes across

participation domains among adults, ages 18 years and older, who have received inpatient rehabilitation

following major lower extremity orthopedic, neurological, or complex medical conditions. The primary goal

of this project is to explore participation and predictors of recovery and how they differ across seven

participation domains in each of the three major diagnostic groups. The data from this study are from the

Rehabilitation Outcomes Study, a longitudinal study of 435 adults who received inpatient rehabilitation.

Participation, activity limitation, and other factors were assessed at 1-, 6-and 12-months. The long term

goal of this project is to assist in developing a foundation for future clinical trials of interventions or treatment

approaches targeting the enhancement of participation during rehabilitation. They lead to improved understanding of participation following in-patient rehabilitation and the factors that can act as barriers or facilitators, both during and following the rehabilitation process.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-13

Fellowships (Merit) Fellowships (Merit)

Hawaii

Text-to-Speech Software as a Means to Improve the Unaided Reading

Comprehension and Overall Reading Skills of High School Students

Identified for Special Education or 504 Services

Kelly Drew Roberts, PhD

1776 University Avenue UA 4-6

Honolulu, HI 96822-2303

robertsk@hawaii.edu

Principal Investigator: Kelly Drew Roberts, PhD

Public Contact: 808/956-9502; Fax: 808/956-5713

Project Number: H133F050046

Start Date: October 01, 2005

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $45,000; FY 06 $0 (No-cost extension through 11/30/2006)

Abstract: This fellowship seeks to determine if text-to-speech software is an effective tool for improving

unaided reading comprehension, reading rate, and reading skills. Text-to-speech software provides access

to written material that is otherwise inaccessible to individuals with poor reading skills. While text-to-speech

software provides this access it is hypothesized that its use may also increase the unaided reading skills of

“poor” readers. For this project, targeted research subjects are 11th grade students (estimated age range

from 16 to 19) who are identified for special education or 504 services (all disability categories) and reading

between the 1.0 and 5.0 grade levels. Outcomes data is collected and analyzed for each subject for the 1.5

years following the initial study. This data is used to determine if the use of text-to-speech software leads to

overall improved educational performance in secondary school and improved transition to valued postschool outcomes such as access to postsecondary education and employment.
8-14 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Fellowships (Merit) Fellowships (Merit)

Illinois

Evaluation of Barriers to Delivery of Rehabilitative Services to Infants

and Toddlers in the Custody of the Illinois Department of Children and

Family Services

Christina M. Bruhn, PhD

Children and Family Research Center

150 N. Wacker Drive, Suite 2120

Chicago, IL 60606

bruhn@uiuc.edu

Principal Investigator: Christina M. Bruhn, PhD

Public Contact: 312/641-2505, ext. 41

Project Number: H133F050018

Start Date: October 01, 2005

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $45,000; FY 06 $0 (No-cost extension through 12/31/2006)

Abstract: This project evaluates systems for delivery of early intervention services to children aged 0 to 3

with developmental delays who are under the guardianship of the State of Illinois and living in foster care

due to having been adjudicated as abused or neglected; and provides vital information concerning the

efficacy of one programmatic approach. The project determines the percentage of these children in Cook

County, Illinois (Chicago) assessed for probable developmental delays by a specialized assessment unit

mandated to serve this entire population, the percentage found to have likely developmental delays, the

percentage formally evaluated, the percentage found to have confirmed developmental delays, the percentage receiving services identified in the Individualized Family Service Plan, barriers associated with the

assessment/referral delivery process, and characteristics associated with cases of children most and least

likely to receive services. Project results are provided to Department of Child and Family Services, and

Department of Health in report form and disseminated through journals, presentations and/or conferences.

This information can be used both to guide policy and practice revision as they apply to programs in Illinois

and to guide program development in other states and counties. Additionally, outcomes contribute to

understanding of systematic approaches to improve assessment, referral, and delivery of services to these

children.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-15

Fellowships (Merit) Fellowships (Merit)

Illinois

Enhanced Sensory Feedback to Improve Locomotion Following Spinal

Cord Injury

Keith E. Gordon

345 East Superior Street, Suite 1406

Chicago, IL 60611

keith-gordon@northwestern.edu

Principal Investigator: Keith E. Gordon

Public Contact: 312/238-2996; Fax: 312/238-2208

Project Number: H133F060031

Start Date: September 01, 2006

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 06 $65,000

Abstract: A common consequence of spinal cord injury (SCI) is loss or decrease of ambulatory function.

This can negatively affect one’s health, quality of life, and interaction in modern society. This project assesses the benefit of enhanced sensory feedback on functional walking ability in people with SCI through the

use of a wearable, custom-designed, robotic device to amplify normal limb loading patterns during gait. The

device creates controllable plantar and dorsiflexion torques about the ankle. The imposed perturbations

stimulate physiological load sensors within the subject’s ankle muscles and on the soles of the feet. Stimulating these load sensors enhances task-specific feedback received by the central nervous system during

locomotion. Previous research demonstrated that the human nervous system uses limb load feedback to

modulate muscle activity during gait. Enhanced load sensation during walking may: (1) result in increased

extensor muscle activity during the stance phase of walking; (2) facilitate large changes in muscle recruitment

necessary to transition from stance to swing; and (3) increase coordinated muscle activity between the lower

limbs.
8-16 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Fellowships (Merit) Fellowships (Merit)

Pennsylvania

Improving Access to Mainstream Employment Programs for People with

Serious Psychiatric Disabilities

Richard C. Baron

728 Davidson Road

Philadelphia, PA 19118

rbaron24@comcast.net

Principal Investigator: Richard C. Baron

Public Contact: 215/248-4664; Fax: 215/248-4664

Project Number: H133F060044

Start Date: October 01, 2006

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 06 $65,000

Abstract: This study evaluates the reasons persons with serious psychiatric disabilities who seek work and

receive job training and placement services, almost exclusively from mental health provider agencies, are

rarely referred to “mainstream” job programs targeted to the general population in their communities.

Research focuses on four core issues: (1) the nature and level of connection between mental health, vocational rehabilitation, and workforce development agencies; (2) the perceived reasons for the infrequent

utilization of mainstream job programs by those with serious psychiatric disabilities; (3) the perceived

benefits and problems associated with greater use of mainstream workforce programs; and (4) the practice,

program, and policy level recommendations respondents believe would improve access to and success in

mainstream job programs by persons with psychiatric disabilities. Research findings are disseminated

through a published final report, journal articles (professional and consumer publications), and conference

and training programs in the field.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-17

Fellowships (Merit) Fellowships (Merit)

Pennsylvania

Skin Blood Flow Oscillations and Pressure Ulcer Risk in Older Adults

with Disabilities

Yih-Kuen Jan

2310 Jane Street, Suite 1300

Pittsburgh, PA 15203

YIJ2@pitt.edu

Principal Investigator: Yih-Kuen Jan

Public Contact: 412/586-6912; Fax: 412/586-6910

Project Number: H133F060025

Start Date: December 01, 2006

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 06 $65,000

Abstract: Pressure ulcers significantly affect the quality of life and overall healthcare costs for older people

with disabilities. Current clinical pressure ulcer prevention in this population is inadequate due to prevention

interventions determined to be at risk by the Braden Scale tool. This project develops alternative methods

and tools for the identification of older people at the highest risk for pressure ulcers. Specific aims include:

(1) comparing microvascular vasodilatory function and blood flow oscillations between older people at high

and low risk of pressure ulcers; and (2) studying the age-related microvascular dysfunction in older people,

correlating to risk levels identified by the Braden Scale, and to the physical characteristics of older people.

Four hypothesizes are tested including: (1) maximal skin blood flow in response to heat is lower in older

people at risk for pressure ulcers as compared with older people at low risk; (2) the power within the

0.008-0.02 Hz frequency band (i.e. endothelial nitric oxide mediation control) embedded in skin blood flow

oscillations is lower in older people at high risk as compared with older people at low risk; (3) the power

within the 0.008-0.02 Hz frequency band is lower in older people ages 75-85 years as compared with

older people ages 65-75 years; and (4) physical characteristics missed in the Braden Scale of older people

show a correlation with the decreased total skin blood flow and/or decreased power within nitric oxide

mediation vasodilation.
8-18 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Fellowships (Merit) Fellowships (Merit)

Pennsylvania

A Survey of Employment Needs of People of Color with HIV/AIDS

Liza Conyers

121 Washington Place

State College, PA 16801

lmc11@psu.edu

Principal Investigator: Liza M. Conyers, PhD

Public Contact: 814/234-4139

Project Number: H133F060045

Start Date: January 01, 2007

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 06 $65,000

Abstract: Using qualitative and quantitative research methods, this project identifies the unique issues and

concerns related to considering and maintaining work among people of color living with HIV/AIDS. Focus

groups are organized to gain perspectives of women and people of color regarding employment related

issues and the use of vocational rehabilitation services. The results of this study are reviewed by an expert

panel and may result in revisions to the NWPC National Employment Needs Survey. The resulting instrument is formatted into a variety of media formats (online, paper and pencil) allowing for maximum distribution among agencies serving people of color with HIV/AIDS. Peer recruiters engage approximately 60

participants in focus groups and 2,000 participants responding to the survey. Analyzed data and findings are

reported to participating agencies, creating an understanding of (1) the extent to which employment services

are needed among people of color, and (2) what factors need to be considered in the design of employment

services for women and people of color.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-19

Fellowships (Merit) Fellowships (Merit)

Washington

The Impact of Alcohol Use on Outcome and Recovery after Traumatic

Brain Injury

Kathleen F. Pagulanyan

1959 NE Pacific Street

HSB BB 919, Box 356490

Seattle, WA 98195

farkat@u.washington.edu

Principal Investigator: Kathleen F. Pagulanyan

Public Contact: 206/616-0371; Fax: 206/685-3244

Project Number: H133F060032

Start Date: August 14, 2006

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 06 $65,000

Abstract: Pre-injury alcohol abuse is common among individuals who sustain traumatic brain injuries (TBI).

Although alcohol consumption generally declines following TBI, as many as half of individuals who were

moderate to heavy drinkers prior to the injury return to this level of drinking following the injury. High levels

of alcohol consumption may impede neurological recovery, contribute to additional head injury, decrease

benefit from rehabilitation, and ultimately impact functional recovery such as return to work and school.

Despite its clinical significance, the factors that underlie return to problematic drinking have not been clearly

elucidated, the temporal course of relapse is not clear, and the impact of drinking on cognitive and functional

recovery is not fully understood. This study: (1) uses archival data to provide information about the incidence of problematic drinking at four time points post-injury (1 month, 6 months, 12 months, and 3-5

years) and individuals with complicated mild to severe TBI who were consecutively admitted to the emergency department; (2) identifies demographic, emotional, and injury-related factors that are associated with

problematic drinking at each time point to identify risk factors for increased alcohol consumption; (3)

evaluates neuropsychological performance over time compared between pre-morbid heavy drinkers who

did and did not return to drinking post-injury in determining the cognitive impact of this behavior; and (4)

evaluates the relationship between functional outcome and post-injury alcohol consumption, while controlling

for pre-injury alcohol use and blood alcohol level at time of injury. This may provide considerable information necessary for effective alcohol treatments post-injury while also providing important information to

persons who have sustained TBI, their families, and rehabilitation professionals.
8-20 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Clinician Researchers and Engineers: Advanced Rehabilitation Research

Training

Marquette University

Orthopaedic and Rehabilitation Engineering Center

735 North 17th Street

PO Box 1811

Milwaukee, WI 53201

depps@mcw.edu

www.orec.org

Principal Investigator: Gerald F. Harris, PhD 414/288-0698

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133P040008

Start Date: September 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000

Abstract: This program provides advanced education and training in rehabilitation research to selected

engineers and clinician researchers. The overall goal is to develop expertise, enthusiasm, and productivity in

rehabilitation research which results in an increase in the number of rehabilitation-trained physicians and

engineers. Fellows are trained to conduct independent transdisciplinary research on problems related to

disability and rehabilitation. The specific goal is produce productive career researchers. The program is

specifically designed to give the postdoctoral trainees the skills needed to become independent rehabilitation

researchers. The postdoctoral trainees experience a program designed to provide each candidate with a

unique set of capabilities to succeed as a rehabilitation researcher. The capstone experience for the

postdoctoral trainees is the submission of an extramural research proposal. Three research areas have been

selected that provide opportunities to participate in advanced-level research: motion analysis, spasticity, and

accessible medical instrumentation. Four clinical areas give participants clinical experiences to link to their

research experiences: spasticity management, pain management, spinal cord injury, and motion analysis. As

part of the professional development of the postdoctoral trainees and to increase the exposure to rehabilitation research, cross-disciplinary teaching is encouraged. At the completion of the program, all trainees have

completed a directed independent research project, written and submitted scientific manuscripts, prepared a

complete extramural grant proposal, and gained experience in managing a functional research team.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-21

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

California

Advanced Rehabilitation Research Program: Ed Roberts Fellowship in

Disability Studies

University of California

IURD

104 Wheeler Hall MC 1870

Berkeley, CA 94720-1870

sschweik@uclink.berkeley.edu

www-iurd.ced.berkeley.edu/Press/2003-02-12disability-studies-fellowship.htm

Principal Investigator: Susan Schweik

Public Contact: 510/642-4874 (V); 510/549-1865; 510/913-5791; Fax: 510/643-9576

Project Number: H133P020009

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06

$150,000

Other Funding: FY 04 $150,000

Abstract: This program trains scholars who have PhD, MD, or other advanced professional degrees,

conferred in the last five years, to be leaders in disability studies and rehabilitation research, teaching and

mentorship. Based at the University of California, Berkeley, a San Francisco Bay area-wide consortium of

universities, research institutes, and disability agencies recruits people who want to broaden their theoretical

outlook and their disability research methodological skills. In particular, the project recruits scholars with

significant disabilities from minority groups who have not had the opportunity for collaborative crossdisciplinary research study of disability that includes social science and the humanities. The project supports

three nine-month-long (September to May) Ed Robert Postdoctoral Fellowships a year for each of the five

program years. Fellows devote their full-time effort to Fellowship activities on site. Funding includes a

stipend and travel funds.
8-22 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Florida

Interdisciplinary Rehabilitation Research Post-Doctoral Program

University of Florida

Department of Occupational Therapy

P.O. Box 100164

Gainesville, FL 32610-0164

wmann@hp.ufl.edu

www.hp.ufl.edu/rehabsci/

Principal Investigator: William C. Mann, PhD

Public Contact: 352/392-2617; Fax: 352/846-1042

Project Number: H133P020005

Start Date: August 01, 2002

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06

$150,000

Abstract: This project addresses the shortage of rehabilitation researchers through an interdisciplinary

postdoctoral training program in rehabilitation research. The focus is on recruiting and training postdoctoral

fellows with backgrounds in professions of high need, specifically rehabilitation engineering, physical therapy,

and occupational therapy. There is also a strong focus on recruiting members of groups that have been

traditionally underrepresented in rehabilitation research positions. The participating faculty for this program

have large funded programs of rehabilitation research and also have considerable experience in serving as

mentors for advanced research training. The program offers postdoctoral fellowships from two to three

years to qualified individuals interested in rehabilitation research. Postdoctoral fellows focus in an area

related to one of the levels of these models: neurological rehabilitation, rehabilitation engineering, and

rehabilitation outcomes research.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-23

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training Project in Rehabilitation

Services Research

Northwestern University

Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

www.ric.org/research/fellowships.php

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-2383

Project Number: H133P030002

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06 $150,000

Abstract: This project develops a five-year fellowship program in rehabilitation-related health services

research at Northwestern University’s Institute for Health Services Research and Policy Studies and the

Department of Physical Medicine and Rehabilitation. It uses available expertise and collaborators to train

postdoctoral fellows in rehabilitation health services research. Over two years the program includes course

work, a practicum, original research, and grant writing. Fellows new to health services research have six

core courses, as well as the two additional courses for all fellows. The first year concentrates on beginning

Masters in Public Health (MPH) courses. The second year includes intermediate MPH course work plus

electives. Each fellow is expected to develop an individual research project by the end of the first training

year, a publishable article by the end of the first year, and two articles by the end of the second year, in

addition to submitting at least one grant application related to the research activity.
8-24 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Rehabilitation Science for Basic Scientists & Engineers: An Advanced

Training Program

Northwestern University

Rehabilitation Institute of Chicago

345 East Superior, Room 1406

Chicago, IL 60611-4496

s-penwarden@northwestern.edu

Principal Investigator: W. Zev Rymer, MD, PhD

Public Contact: Sue Penwarden 312/238-3919; Fax: 312/238-2208

Project Number: H133P040007

Start Date: May 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $149,625; FY 05 $149,922; FY 06 $149,570

Abstract: The goal of this program is to increase the number of PhD engineers and basic scientists trained

to perform research aimed at solving problems of people with disabilities. To meet this objective, the project

trains postdoctoral scientists in three areas of special expertise: musculoskeletal biomechanics;

neurorehabilitation; and prosthetics, orthotics, and biomaterials. Targeted technical training is coordinated

with intensive clinical instruction and experience. Postdoctoral trainees, including scientists and engineers

from minority or disability groups, are recruited by regional and national advertising and via the Internet.

Many training faculty are based within the Rehabilitation Institute of Chicago, providing access to active

clinical rehabilitation programs, and interaction both with clinical faculty and people with disabilities.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-25

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Advanced Training in Translational and Transformational Research to

Improve Vocational Outcomes for Persons with Disabilities

University of Illinois at Chicago

Department of Occupational Therapy

1919 West Taylor Street; MC 811

Chicago, IL 60612

Kielhfnr@uic.edu

Principal Investigator: Gary Kielhofner, PhD 312/996-4973

Public Contact: Fax: 312/413-0256

Project Number: H133P060003

Start Date: September 01, 2006

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 06 $150,000

Abstract: This project provides an intensive, interdisciplinary postdoctoral training program that actively

engages scholars in research designed to improve employment for persons with disabilities. This advanced

training program focuses on sub-populations of people with disabilities who are likely to encounter the

greatest number of barriers to accessing employment and relevant vocational services. Moreover, the

training program emphasizes preparing scholars to conduct research that has real world impact (i.e., guiding

and changing services, programs, organizations, and policies that influence employment of persons with

disabilities). As such it emphasizes: (1) translational scholarship that uses empirical knowledge to develop,

refine, and test optimal services and environmental strategies to support employment; and (2) transformational scholarship employing participatory methodologies that involve stakeholders in the research process

and directly improve services, programs, organizations, and policies. The training is strongly informed by

concepts from disability studies that highlight the importance of relevant services that address the perspectives of persons with disabilities and that address environmental barriers to employment. The postdoctoral

training program recruits and enrolls seven highly qualified postdoctoral trainees from a variety of disciplines.

Particular efforts are made to recruit postdoctoral trainees with disabilities as well as those from diverse

backgrounds. Each trainee completes an intensive two-year advanced training program designed to assure

acquisition of key skills critical to successful research careers. The training program includes: (1) didactic

preparation, (2) close mentoring by highly qualified researchers, (3) immersion in ongoing research, and (4)

field placement in carefully selected programs or organizations where employment of people with disabilities

is being addressed. Trainees undergo a structured and closely supervised training process with a range of

opportunities for didactic and experiential training and with common expected milestones. At the same time,

each trainee’s program is individually designed to assure that the trainee has access to the most rigorous and

relevant concepts and research methodologies for his/her chosen focus for studying vocational needs,

services, and outcomes. The project monitors and assures high quality training, and supports trainees to

develop capacity to enter productive research careers that directly improve services, programs, and policies

and that remove barriers to the employment of people with disabilities.
8-26 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Massachusetts

Advanced Research Training Program in Psychiatric Rehabilitation

Boston University

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue

Boston, MA 02215-1303

zlatka@bu.edu

ellison2@bu.edu

www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD; Marsha Ellison, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133P020011

Start Date: September 01, 2002

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 02 $149,984; FY 03 $149,991; FY 04 $149,996; FY 05 $149,988; FY 06

$149,945

Abstract: This project prepares a cadre of six advanced-level researchers in the area of psychiatric rehabilitation. The recruitment efforts target consumers, with the expectation that one or more consumers will be

selected for the training program. Six fellows are recruited over the course of the project. The training

program consists of two consecutive cycles of 2.25-year postdoctoral fellowships in psychiatric rehabilitation research. In order to optimize the training experience, three fellows are in residence during each cycle.

While the fellowship is designed to provide broad-based intensive training in psychiatric rehabilitation

research, the six fellows develop a particular expertise in conducting recovery-oriented research, given the

current research profile of the Center for Psychiatric Rehabilitation at Boston University. Through a variety

of training modalities fellows acquire competencies in the following areas: psychiatric rehabilitation and

recovery oriented systems, recovery framework and consumer issues, research design/methodology,

statistics, computer literacy, conduct of applied rehabilitation research, and grant and professional writing.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-27

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Massachusetts

Post-Doctoral Fellowship in Rehabilitation Outcomes and Effective

Research

Boston University

Health and Disability Research Institute

53 Bay State Road

Boston, MA 02215

mtripodi@bu.edu

www.bu.edu/cre/training

Principal Investigator: Alan M. Jette, PhD 617/358-3472

Public Contact: Maria Tripodi 617/353-4202; Fax: 617/353-1355

Project Number: H133P050001

Start Date: September 01, 2005

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 05 $150,000; FY 06 $150,000

Abstract: The BU Post-Doctoral Fellowship Program in Outcomes Research provides an interdisciplinary

training and mentorship experience. The target group is doctorally-prepared rehabilitation professionals. The

major function is to help post-doctoral fellows develop and refine the skills they will need to conduct high

quality, independent, funded research on the outcomes and effectiveness of rehabilitation care. Innovative

strategies include: Obtaining advanced knowledge in the four content areas of responsible conduct of

research, advanced research design, advanced statistical methods, and contemporary measurement methodology; conceptualizing and assuming a major role in writing scientific articles; obtaining experience in

developing and presenting scientific presentations; assuming a major role in writing research grant applications; and developing the ability to contribute in a meaningful and constructive fashion in planning and

implementing scientific abstracts, grant applications, and scientific manuscripts as part of a research team.

The main outcome of the program is to contribute to the creation of a cadre of highly skilled researchers

equipped to conduct research to improve rehabilitation outcomes and evaluate existing and new rehabilitation interventions.
8-28 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Michigan

The UMHS/MSU/AACIL Rehabilitation Research Training Program

University of Michigan

Department of Physical Medicine and Rehabilitation

Rehabilitation Psychology

325 East Eisenhower, Suite 100

Ann Arbor, MI 48108

dgtate@umich.edu

www.med.umich.edu/pmr/arrtp/

Principal Investigator: Denise G. Tate, PhD, ABPP

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133P030004

Start Date: September 01, 2003

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06 $150,000

Abstract: The University of Michigan Health System (UMHS), Department of Physical Medicine and

Rehabilitation, and the Ann Arbor Center for Independent Living (AACIL) with consulting faculty from

Michigan State University (MSU) and Wayne State University (WSU) have developed a training program

to train six PhD and ten MD fellows. Training opportunities include the existing research programs funded at

UMHS, the academic doctoral level rehabilitation counseling program at MSU, the multidisciplinary rehabilitation program at WSU, and opportunities for research training at a community-based agency, the

AACIL. Emphasizing the consumer-scientist-practitioner model, this multidisciplinary research training

program utilizes faculty and resources from 3 universities and from the AACIL to train 16 new fellows.

Fellows and resident trainees may select from a curriculum that focuses on three content areas: (1) health

rehabilitation outcomes; (2) independent living and community re-integration; and (3) social/environmental

aspects of rehabilitation, including assistive technology.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-29

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Missouri

Health Activity Rehabilitation Research Training Center (HARRTC)

University of Missouri/Columbia

Department of Physical Medicine and Rehabilitation

DC046.00; One Hospital Drive

Columbia, MO 65212

garrettd@health.missouri.edu

harrtc.missouri.edu/

Principal Investigator: Jerry C. Parker, PhD 573/882-3995

Public Contact: Deborah Garrett, Project Coordinator 573/882-1632; Fax: 573/884-4540

Project Number: H133P050005

Start Date: September 01, 2005

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 05 $150,000; FY 06 $150,000

Abstract: The specific aim of the Health Activity Rehabilitation Research Training Center is to prepare

postdoctoral trainees with comprehensive, collaborative research skills requisite for a career in independent

rehabilitation research. A key outcome of this project is a sustainable, replicable, training model that enhances the flow of basic research findings to clinical settings, thereby enhancing rehabilitation strategies for

individuals with disabilities. One-third of project fellows are selected from underrepresented populations,

including individuals with disabilities. Postdoctoral fellows study a rigorous, two-year core curriculum in

advanced scientific methodology, and engage in multidisciplinary training experiences through: (1) collaborating agencies; (2) campus and community settings; (3) research mentors (scientists) from Biomedical

Sciences, Physiology and Pharmacology, Nutrition Sciences, and Physical Therapy; and (4) rehabilitation

clinician-mentors. The training program incorporates didactic, classroom, and hands-on laboratory training.

By the conclusion of training, postdoctoral fellows will have completed a supervised independent research

project, prepared scientific manuscripts, presented their research findings at national meetings, and submitted their capstone project, an extramural grant application. This program offers fellows a dual model of

mentorship: a clinical mentor and a scientist research mentor. In addition, a graduate-thesis research model

provides fellows with first-hand research experience.
8-30 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New Jersey

Advanced Psychiatric Rehabilitation Research on Employment and

Community Integration

University of Medicine and Dentistry of New Jersey

School of Health Related Profession

1776 Raritan Road

Scotch Plains, NJ 07076-2997

Principal Investigator: Kenneth J. Gill, PhD 908/889-2438

Project Number: H133P050006

Start Date: September 01, 2005

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $149,999; FY 06 $149,999

Abstract: This project offers a postdoctoral research training program in the areas of community integration, natural supports including “circles of support”, and rehabilitation readiness. Fellows participate in a

variety of mentoring and didactic experiences provided by research mentors from UMDNJ and the University of Pennsylvania. Fellows have the opportunity to continue to develop their own long-term research

program while participating in the research activities of their mentor. They regularly present at departmental

colloquia, and national and state conferences. Fellows develop grant proposals and prepare articles for

publication in peer-reviewed journals. Both didactic and field training in psychiatric rehabilitation research

focus on scientific methodology including experimental, quasi-experimental, and correlational and survey

methods. Fellows participate in research in one of the following research areas: (1) comparing alternative

job retention strategies including circle of support approach to a diversity of strategies; (2) the reliability and

validity of rehabilitation readiness measures and indicators including their relationship to employment outcomes; and (3) a variety of community integration projects on the factors that influence community integration, public policy affecting the community and interventions designed to promote community integration

through case management, internet-based self-help or supported education provided by peers. Partner

institutions include the University of Pennsylvania RRTC on Community Integration, Upenn School of Social

Work, Indiana University-Purdue University School of Psychology, Boston University Sargent College of

Health and Rehabilitation and the Veterans Affairs of New Jersey.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-31

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New Jersey

Advanced Rehabilitation Research Training Center on Outcomes and

Intervention Effectiveness

University of Medicine & Dentistry of New Jersey

Department of Physical Medicine and Rehabilitation, B261

150 Bergen Street

West Orange, NJ 07103

mjohnston@kmrrec.org

www.kmrrec.org/KM/careers/post_doc_research_fellowships.php3

Principal Investigator: Mark V. Johnston, PhD 973/243-6810

Public Contact: Mark V. Johnston, PhD 973/243-6810; Fax: 973/243-6963

Project Number: H133P020012

Start Date: March 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $149,847; FY 03 $149,500; FY 04 $149,500; FY 05 $149,500; FY 06

$149,500

Abstract: This postdoctoral research training program develops researchers who advance knowledge of

the impact of interventions—medical, activity-based, social-psychological, and environmental—on outcomes for persons with physical and neurological disabilities. The program emphasizes the actual conduct of

research, leading to publication. Outcomes-related study topics include research on prognosis and severity

adjustment, treatment guidelines, quality improvement strategies, cost-effectiveness, and issues of health

policy. Fellows typically begin by participating in one or more research projects suggested by their mentor

and studying to improve their knowledge and skills. Fellows also develop their own research grant proposals. The program is supported by the University of Medicine and Dentistry of New Jersey/New Jersey

Medical School and the Kessler Medical Rehabilitation Research and Education Corporation.
8-32 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New York

Advanced Rehabilitation Research Training Program

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

One Gustave L. Levy Place; Box 1240

New York, NY 10029

mary.hibbard@mssm.edu

www.mssm.edu/tbinet

Principal Investigator: Mary R. Hibbard, PhD 212/659-9374

Public Contact: 212/659-9374; Fax: 212/348-5901

Project Number: H133P050004

Start Date: September 01, 2005

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 05 $149,999; FY 06 $149,999

Abstract: This Advanced Rehabilitation Research Training Program increases research capacity by training

ten doctoral level professionals interested in pursuing research careers in rehabilitation of individuals with

traumatic brain injury (TBI) and spinal cord injury (SCI). In addition to expanding their research expertise,

fellows will increase their knowledge of participatory action research, quantitative and qualitative research

methods, and actively participate with an interdisciplinary team of rehabilitation researchers. Fellows are

taught approaches to performance management and methods of evidenced-based practice review. Research

capacity building of the fellows is facilitated via mentoring on independent research projects and clinical

supervision in interdisciplinary research experiences. To ensure sensitivity to issues germane to individuals

with TBI and SCI, fellows spend a portion of their time providing clinical interventions or participating in

structured community experiences. Performance measures are utilized to monitor progress of the program

and its fellows, with oversight provided by an executive committee and an advisory board. By completion of

training, fellows are expected to have completed a minimum of one independent research project, presented

the results of their research to professional and consumer groups, submitted their findings for publication in

peer-reviewed journals, and participated in writing extramural grant proposals.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-33

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Texas

Interdisciplinary Rehabilitation Research Training Program

University of Texas Medical Branch

301 University Boulevard

Galveston, TX 77555-1137

kottenba@utmb.edu

www.sahs.utmb.edu/rehab/

Principal Investigator: Kenneth J. Ottenbacher, PhD

Public Contact: Beth Cammarn 409/747-1637; Fax: 409/747-1638

Project Number: H133P040003

Start Date: July 01, 2004

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $145,686; FY 05 $145,686; FY 06 $145,686

Abstract: This ARRT program provides postdoctoral research opportunities to qualified individuals interested in clinical and academic careers related to rehabilitation research. Three postdoctoral fellows must

plan, conduct, and disseminate research in one of the following areas: cognitive/neurological rehabilitation,

applied physiology/biomechanics of rehabilitation, or geriatric rehabilitation. Each rehabilitation research

fellow selects one of the three research areas and conducts clinical investigations for up to three years.

Outcomes include published research studies, presentations at national scientific meetings, submission of

grant proposals, completion of research related courses, training in techniques of dissemination, and the

development of interdisciplinary research networks. In addition to participating in clinical research activities,

each fellow completes a series of core courses and directed study related to interdisciplinary research and

the ethics associated with scientific inquiry and the use of human subjects in rehabilitation research. All

fellows participate in a practicum experience involving persons with disabilities and their families/caregivers

organized through the Transitional Learning Center. The activities of each postdoctoral fellow are directed

and monitored by a fellowship supervisor with a demonstrated ability to implement, conduct, and disseminate the results of research investigations contributing to the advancement of rehabilitation science.
8-34 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Texas

Advanced Rehabilitation Research Training

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

One Baylor Plaza

Houston, TX 77030

drintala@bcm.tmc.edu

public.bcm.tmc.edu/pm&r/education/Fellowships/RehabResearch.html

Principal Investigator: Diana H. Rintala, PhD 713/791-1414, ext. 5807

Public Contact: Karstena Ockelberry 713/797-5940; Fax: 713/797-5982

Project Number: H133P020003

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06

$150,000

Abstract: This program trains postdoctoral fellows in the skills necessary to become independent investigators in rehabilitation. Research training in the Department of Physical Medicine and Rehabilitation is

multidisciplinary in nature, and encompasses the spectrum from basic mechanism to societal integration.

Through this program, fellows develop research expertise in spinal cord injury, stroke, Parkinson’s disease,

amputee rehabilitation, neuropsychological rehabilitation/cognitive neuropsychology, rehabilitation outcomes,

and social policy. The coursework includes topics such as research methodology, statistical methods, ethical

issues, special populations, and scientific writing. The Applied Rehabilitation Research Course complements

the Clinical Scientist Training Program by emphasizing the unique characteristics of research in rehabilitation.

Fellows also participate in other education activities such as the department’s Research, Education, and

Development Seminar and are expected to present and produce documentation for publication on their

independent research and prepare applications for federal funding building on their project for career

development. They also attend, and submit abstracts for presentation at, national professional meetings to

begin to integrate into the greater rehabilitation research community.
NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research 8-35

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Virginia

Advanced Research Training Program

Virginia Commonwealth University

Department of Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0542

lalivingston@vcu.edu

www.npy.pmr.vcu.edu/arrt/overview.htm

Principal Investigator: Jeffrey Kreutzer, PhD 804/828-9055

Public Contact: Lee Livingston 804/828-3706; Fax: 804/828-2378

Project Number: H133P040006

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000

Abstract: This project is an advanced rehabilitation research training (ARRT) program for individuals with

advanced degrees who are committed to a career in rehabilitation research with a focus on neurobehavioral

recovery and intervention. Training and research activities address brain injury, aneurysms, brain tumors, and

other neurological disorders. Individualized research training plans emphasizing scientific rigor guide fellows’

choices of training activities. Outstanding mentors, didactic experiences, and collaborative and independent

research activities provide the foundation for the VCU ARRT program. Mentors include internationally and

nationally renowned, distinguished scientists from the fields of rehabilitation medicine, neuropsychology,

psychiatry, neurosurgery, and vocational rehabilitation. Core courses on ethics, conduct in scientific research, and grant writing are complemented by grand rounds and graduate courses. All fellows must complete and submit a grant application during the second year of their fellowship.
8-36 NIDRR Program Directory FY 2006 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Wisconsin

Advanced Rehabilitation Research Training for Physicians and

Biomedical Engineers

Marquette University

Orthopaedic and Rehabilitation Engineering Center

735 North 17th Street; P.O. Box 1881

Milwaukee, WI 53201

depps@mcw.edu

www.orec.org

Principal Investigator: Gerald F. Harris, PhD 414/288-0698

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133P020004

Start Date: July 01, 2002

Length: 60 months

NIDRR Officer: William V. Schutz, PhD, MSW, MPH

NIDRR Funding: FY 02 $84,566; FY 03 $144,506; FY 04 $148,634; FY 05 $149,186; FY 06

$149,748

Abstract: This project develops expertise, enthusiasm, and productivity in rehabilitation research that

results in an increase in the number of rehabilitation-trained physicians and biomedical engineers able to

conduct independent transdisciplinary research on problems related to disability and rehabilitation. The

program is specifically designed to give the postdoctoral trainees the skills needed to become productive

career researchers. The training program utilizes a rehabilitation research team consisting of a focused cadre

of mentors and two postdoctoral fellows (one postdoctoral physician and one postdoctoral biomedical

engineer). The trainees are enrolled in the research training program for 18 months. A total of three physicians and three biomedical engineers participate in this training program over the five-year period.