NIDRR

Program Directory

Fiscal Year 2001

2001

Produced by The National Rehabilitation Information Center

A project funded by The National Institute on Disability and Rehabilitation Research, project number ED-99-CO-0057.
National Institute on Disability and Rehabilitation Research

Program Directory 2001

Produced by the

National Rehabilitation Information Center

Lanham, MD

Mark X. Odum

Director

Daniel L. Wendling

Media and Public Education Manager

Jessica H. Chaiken

Media Specialist
The full text of this public domain publication is available at the NARIC’s home page at http://

www.naric.com and in alternate formats upon request. For more information, please contact us at:

NARIC

4200 Forbes Boulevard, Suite 202

Lanham, MD 20706

800/346-2742 or 301/459-5900 (Voice)

or 301/459-4263 (TTY).
Contents

Introduction .....................................................................................................i

Research Priorities

Employment Outcomes ..................................................................................1

Health and Function........................................................................................2

Technology for Access and Function..............................................................3

Independent Living and Community Integration ............................................4

Associated Disability Research Areas ............................................................5

Knowledge Dissemination and Utilization ...................................................6

ADA Technical Assistance Projects ...............................................................7

Capacity Building for Rehabilitation Research Training ..............................8

State Technology Assistance .........................................................................9

Appendices

Subject Index ................................................................................................. A

Grantees ......................................................................................................... B

Projects by State ............................................................................................ C

Principal Investigators ................................................................................... D

Projects by Program Type .............................................................................. E
Introduction 1

Introduction

The mission of the National Institute on Disability and Rehabilitation Research (NIDRR) is to generate, disseminate and promote knowledge that will improve the lives of persons with disabilities in

their communities. NIDRR conducts comprehensive and coordinated programs of research and

related activities to assist in the achievement of the full inclusion, social integration, employment,

and independent living of people with disabilities. This edition of the NIDRR Program Directory lists

all projects funded by NIDRR during the 2001 fiscal year.

NIDRR’s Long-Range Plan, announced in the Federal Register, December 7, 1999 (http://

www.ed.gov/offices/OSERS/NIDRR/#LRP), provides background on NIDRR’s conceptual base. It

describes the “new paradigm of disability,” which posits that disability is an interaction between the

individual and the environment. NIDRR’s research focus includes such areas as: employment outcomes, health and function, technology for access and function, independent living and community

integration, associated disability research areas, knowledge dissemination and utilization, and capacity

building for rehabilitation and international activities. For detailed descriptions of these areas, consult

the Long-Range Plan.

NIDRR’s Research Program

NIDRR’s research is conducted via a network of individual research projects and centers of excellence throughout the country. Most NIDRR grantees are universities or providers of rehabilitation or

related services. NIDRR’s largest funding programs are the Rehabilitation Research and Training

Centers (RRTCs) and Rehabilitation Engineering Research Centers (RERCs). NIDRR also makes

awards for information dissemination and utilization centers and projects, field initiated projects,

research and development projects, advanced research training projects, Mary E. Switzer fellowships

and NIDRR scholars, small business innovative research, and model systems of care. NIDRR also

administers the State Technology Assistance Projects, the Assistive Technology Loan Funds, and the

Disability and Business Technical Assistance Centers.

Disability and Rehabilitation Research Projects

The Disability and Rehabilitation Research Projects (DRRP) program allows for projects with special

emphasis on research, demonstrations, training, dissemination, utilization, and technical assistance.

Projects may include combinations of these activities. True to the mission of NIDRR, these projects

may develop methods, procedures, and rehabilitation technology to assist in achieving the full inclusion and integration into society, employment, independent living, family support, and economic and

social self-sufficiency of individuals with disabilities, especially individuals with the most significant

disabilities, or to improve the effectiveness of services authorized under the Rehabilitation Act.

Model Systems

NIDRR administers programs that have become world-renowned model systems of care for persons

with spinal cord injuries, burns, and traumatic brain injuries. The Model Systems establish innovative

1
2 Introduction

projects for the delivery, demonstration, and evaluation of comprehensive medical, vocational, and

other rehabilitation services. The work of the Model Systems begins at the point of injury and ends

with successful re-entry into full community life. These projects collect and contribute data on patient

characteristics, diagnoses, causes of injury, interventions, outcomes, and costs to a uniform national

database; participate in collaborative research with other Model System centers; and coordinate research efforts with other related grant recipients.

Advanced Rehabilitation Research Training Projects

The Advanced Rehabilitation Research Training (ARRT) Program (formerly known as the Research

Training Grants Program) expands the capacity of the field of rehabilitation research by providing

advanced training opportunities. These projects provide rehabilitation research training for persons

with clinical or other experience, who may be lacking certain formal research training. Grants are

made to institutions to recruit qualified persons with doctoral or similar advanced degrees with

clinical, management, or basic science research experience, and prepare them to conduct independent

research on problems related to disability and rehabilitation. This research training may integrate

disciplines, teach research methodology in the environmental or new paradigm context, and promote

the capacity for Disability Studies and rehabilitation science. These training programs must operate

in interdisciplinary environments and provide training in rigorous scientific methods.

Rehabilitation Research and Training Centers

NIDRR’s Rehabilitation Research and Training Centers (RRTCs) conduct coordinated and integrated

advanced programs of research targeted toward the production of new knowledge, which may improve rehabilitation methodology and service delivery systems, alleviate or stabilize disabling

conditions, or promote maximum social and economic independence for persons with disabilities.

Operated in collaboration with institutions of higher education or providers of rehabilitation or other

appropriate services, RRTCs serve as centers of national excellence in rehabilitation research. Also,

they are national or regional resources for research information for individuals with disabilities and

the parents, family members, guardians, advocates, or authorized representatives of the individuals.

These centers also conduct related training programs, including graduate, pre-service and in-service

training. The centers also disseminate and promote the utilization of research findings.

Rehabilitation Engineering Research Centers

Rehabilitation Engineering Research Centers (RERCs) conduct programs of advanced research of an

engineering or technical nature designed to apply advanced technology, scientific achievement, and

psychological and social knowledge to solve rehabilitation problems and remove environmental

barriers. Each center is affiliated with one or more institutions of higher education or nonprofit

organizations. The RERCs’ work in a rehabilitation setting provides an environment for cooperative

research and the transfer of rehabilitation technologies into rehabilitation practice. Involved at both

the individual and systems levels, RERCs seek to find and evaluate the newest technologies, products, and methods that ultimately can benefit the independence of persons with disabilities and the

universal design of environments for all people of all ages. The centers also exchange technical and
Introduction 3

engineering information worldwide and improve the distribution of technological devices and equipment to individuals who need them.

State Technology Assistance Projects

This program supports statewide, consumer-driven, technology-related assistance networks for individuals of all ages and disabilities. States and territories are eligible to apply for one grant per entity

which spans a total of ten years of Federal funding. The first phase is a development grant and lasts for

three years. The second phase is known as the first extension and can last for two more years. The

third and final phase is known as the second extension and lasts for five additional years. The Assistive

Technology Act of 1998 (AT Act) authorized three additional years for States that have completed ten

years, at a reduced funding level. Several states have received one-year alternative financing projects

aimed at providing financial assistance in the purchase of assistive technology. Projects work with

public and private lenders in their states.

Fellowships

Fellowships, named for the late Mary E. Switzer, give individual researchers the opportunity to

develop new ideas and gain research experience. There are two levels of fellowships: Distinguished

Fellowships and Merit Fellowships. Distinguished Fellowships go to individuals of doctorate or

comparable academic status, who have had seven or more years of experience relevant to rehabilitation

research. Merit Fellowships are given to persons with rehabilitation research experience, but who do

not meet the qualifications for Distinguished, usually because they are in earlier stages of their careers.

Fellows work for one year on an independent research project of their design.

NIDRR Scholars

The Scholars program attempts to build research capacity by recruiting undergraduates with disabilities

to work in NIDRR-funded Centers and projects and introduces them to disability and rehabilitation

research issues. Scholars gain work experience and participating centers receive a small stipend. This

program is an innovative approach aimed at generating interest in research careers for persons with

disabilities.

ADA Technical Assistance Projects

NIDRR administers a network of grantees to provide information, training, and technical assistance to

businesses and agencies with responsibilities under the Americans with Disabilities Act (ADA). Ten

regional Disability and Business Technical Assistance Centers (DBTACs) are funded to provide

information and referral, technical assistance, public awareness, and training on all aspects of the

ADA. Several National Training Projects target particular groups, organizations, or subject areas for

ADA training and the ADA Technical Assistance coordinator contract assists all of the grantees with

their activities.

Small Business Innovative Research

Small Business Innovative Research (SBIR) grants help support the production of new assistive and

rehabilitation technology. This two-phase program takes a product from development to market readiness.
4 Introduction

NIDRR Contracts

Through its contracts, NIDRR seeks improved methods, systems, products, and practices to add to its

work. The contracts are for specific activities related to management, research, and information dissemination.

NARIC and the NIDRR Program Directory

The Program Directory is compiled by the National Rehabilitation Information Center (NARIC).

NARIC functions as NIDRR’s library, providing the rehabilitation community with information and

referral services to help locate pertinent research related to specific areas of expertise. Since 1977,

NARIC has been the primary source of rehabilitation and disability information generated by

NIDRR funds, with special priority services to NIDRR staff and NIDRR-funded project staff.

NARIC also produces a companion to the Program Directory, which is the Compendium of Products

by NIDRR Grantees and Contractors. Copies of NIDRR-supported research products are received by

NARIC and added to the reference collection and Compendium database. Information about holdings are available online at http://www.naric.com.

Neither NARIC nor NIDRR assumes liability for the Directory’s contents or the use thereof. NARIC

does not evaluate or certify the programs or products of the organizations listed in the Directory.

This Directory is not intended for use as a fiscal document to show how NIDRR funds are allocated;

its purpose is to display the range of programs that NIDRR supports. This listing is current as of

October 1, 2001.

NARIC operates under U.S. Department of Education contract ED-99-CO-0057.
Employment Outcomes

NIDRR seeks to improve employment outcomes for people with disabilities by

funding research into a wide spectrum of employment and disability issues,

including economics; Federal, State, and community employment programs;

accommodation; technology; education; and ergonomics and the work environment.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 1

Disability and Rehabilitation Research Projects .................................................................................. 14

Field-Initiated Projects (FIPs) .............................................................................................................. 19

Small Business Innovative Research (SBIR), Phase I ......................................................................... 30

Small Business Innovative Research (SBIR), Phase II ........................................................................ 31

Employment Outcomes 1-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Arkansas

Rehabilitation Research and Training Center on Improving Vocational

Rehabilitation Services for Individuals Who Are Deaf or Hard of

Hearing

University of Arkansas/Little Rock

College of Education

4601 West Markham Street

Little Rock, AR 72205

dwatson@comp.uark.edu

http://www.uark.edu/depts/rehabres

Principal Investigator: Douglas Watson, PhD

Public Contact: 501/686-9691; Fax: 501/686-9698

Project Number: H133B010501

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $600,000

Abstract: This program enhances the rehabilitation outcomes of persons who are deaf or hard of

hearing who are served by VR and related employment programs. When appropriate, the unique

needs of specific subgroups within this diverse and heterogeneous population are investigated. The

ultimate goal of these efforts is to improve the capacity of the VR system and related programs to

address the career preparation, entry, maintenance, and advancement, as well as the community

living needs, of the target population. Research activities include: investigating the impact of

changes in federal employment and rehabilitation legislation and policy on the delivery of services to

the target population; investigating the impact of business practices that contribute to accessible

work and workplace supports to enhance the employment of the target population; and identifying,

developing, and assessing rehabilitation-related innovations that enhance employment and community living outcomes of the target population.
1-2 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

California

Research and Training Center for Persons Who Are Hard of Hearing

or Late Deafened

Alliant University Foundation

California School of Professional Psychology

6160 Cornerstone Court East

San Diego, CA 92121-3725

rrtc@alliant.edu

http://www.hearinghealth.org

Principal Investigator: Raymond J. Trybus, PhD

Public Contact: 858/623-2777, ext. 390 (V); 800/432-7619 (TTY); 858/554-1540 (TTY); Fax: 858/

642-0266

Project Number: H133B70016

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 97 $499,911; FY 98 $499,911; FY 99 $499,911; FY 00 $499,911; FY 01

$499,911

Abstract: This Center implements a series of projects involving the impact of hearing loss on

workplace and personal adjustment issues through collaboration with business, professional, and

consumer organizations. The primary target populations are accessed through a network of consumer

organizations, collaborating companies, and service agencies and associations. Project examples

include the identification of factors that have a negative impact on the employment status of people

who are hard of hearing or late deafened. Data sources include affiliations with Veteran’s Affairs

hospitals, local minority communities, and multiple consumer organizations. Interventions include

psycho-educational training sessions with consumers and family members, consultations with businesses, and presentations to key individuals and groups such as labor union officials, employee

assistance counselors, and psychological and public health professionals. Interventions include

“rights training” in relation to the ADA, and focus on assistive technologies. The project provides

workshops for families and employers, establishes support groups for people with cochlear implants,

and creates a family life center project: a “one stop shopping” facility where individuals who are

hard of hearing or late deafened can obtain a variety of interventions, information, and guidance

regarding services and devices. Dissemination includes information on the ADA and Tech Act.

Training targets groups, including employers, consumers, and human resource organizations.
Employment Outcomes 1-3

Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Rehabilitation Research and Training Center on Workforce

Investment and Employment Policy for Persons with Disabilities

Community Options, Inc.

1130 - 17th Street Northwest, Suite 430

Washington, DC 20036

michael.morris@comop.org

http://www.comop.org

Principal Investigator: Michael Morris; Peter Blanck; Michael Collins; Robert Silverstein

Public Contact: Michael Morris, Project Director, 202/721-0120; Fax: 202/721-0124

Project Number: H133B980042

Start Date: November 1, 1998

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $450,000; FY 99 $450,000; FY 00 $450,000; FY 01 $450,000

Abstract: This Center helps expand, improve, and modify disability policy and other more general

policies in order to improve the employment status of Americans with disabilities and increase their

independence and self-sufficiency. Based on research from this project and other NIDRR-funded

projects, this project establishes an information and technical assistance resource to government

leaders and decision makers at state and federal levels, individuals with disabilities, parents and

family members, and other interested parties, offering new and revised approaches to workforce

development and employment policy. Studies conducted by this project include: (1) an analysis of

the relationship between select federal and state policies upon the employment of people with disabilities, (2) an analysis of the policy-based implications of outcome-based reimbursement on the

delivery of employment and rehabilitation services to people with disabilities, and (3) an analysis of

the effect of civil rights protections and multiple environmental factors on promoting or depressing

the employment status of people with disabilities. The Center actively seeks to be outcome-focused

and involve individuals with disabilities, parents, and family members in all facets of project activities, including training, research, information dissemination, and technical assistance.
1-4 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Hawaii

National Center for the Study of Postsecondary Educational Supports:

A Rehabilitation Research and Training Center

University of Hawaii at Manoa

Center on Disability Studies/University Affiliated Program

1776 University Avenue/UA4-6

Honolulu, HI 96822

stodden@hawaii.edu; huap@hawaii.edu

http://www.rrtc.Hawaii.edu

Principal Investigator: Robert Stodden, PhD, 808/956-9199

Public Contact: Juana Tabali Weir, Administrative Assistant; Valerie Shearer, Pacific Rim and

Grants Coordinator, 808/956-3975 (Tabali-Weir); 808/956-2673 (Shearer); Fax: 808/956-

5713

Project Number: H133B980043

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 98 $595,000; FY 99 $605,000; FY 00 $600,000; FY 01 $600,000

Abstract: The research this project conducts on educational supports is designed to increase access

to postsecondary education programs and improve outcomes for people with disabilities. The research includes: (1) examining and evaluating the current status of educational supports, including

(a) individual academic accommodations, (b) adaptive equipment, (c) case management and coordination, (d) advocacy, and (e) personal counseling and career advising; (2) identifying effective

support practices and models of delivery that contribute to successful access, performance, and

retention and completion of postsecondary programs; (3) identifying specific barriers to the provision of disability-related services, including policy and funding requirements; (4) assessing the

effectiveness of promising educational practices and disability-related services that are important to

career mobility and success in the workplace; (5) testing the effectiveness of specific models of

delivery that are believed to increase the accessibility of educational supports and innovative technologies; (6) identifying the types of educational and transitional assistance that postsecondary

programs provide to improve educational and subsequent labor market success; (7) providing training, technical assistance, and information to support personnel, public and private rehabilitation

personnel, career placement specialists, and students with disabilities based on the findings and

implications of the research program; and (8) implementing a consumer-driven empowerment

evaluation plan for assessment of the Center’s progress in achieving its goals. Additional goals

include conducting national surveys and field studies within diverse postsecondary educational

settings, and implementing an innovative and integrated training, technical assistance, and dissemination model to ensure the application and sustainability of research-proven policy and practice. This

project participates in the NIDRR Scholars program, providing motivated undergraduates with

internship experience in disability research.
Employment Outcomes 1-5

Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Employment

Incentives

Cerebral Palsy Research Foundation of Kansas, Inc.

5111 East 21st Street

Wichita, KS 67208-1606

bobh@cprf.org

http://www.cprf.org/research.html

Principal Investigator: Phillip Gaunt, PhD (Wichita State University); Mark Lengnick-Hall, PhD

(University of Texas at San Antonio), 316/978-6072 (Gaunt); 210/458-7303 (Lengnick-Hall)

Public Contact: Robert Hull, Project Director, 316/652-1551; Fax: 316/688-5687

Project Number: H133B010901

Start Date: August 1, 2001

Length: 12 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $399,362

Abstract: This program on employment incentives focuses on developing communication research

studies, knowledge-based educational materials, and public policy recommendations. The rehabilitation and disability research literature reveals a significant imbalance toward studies of the factors

affecting the supply of people with severe disabilities for the labor market. Unfortunately, fewer

studies explore the factors affecting the demand among employers for such employees. There are

almost no communications research studies that survey employers directly about their responses and

reactions to the concept of employing people with disabilities. Federal, state, and local governments

have addressed this problem by providing various incentives, such as the current Work Opportunity

Tax Credit. However, there are few communication research studies that explore how well employers

are informed about such incentives, and how favorably or unfavorably they would respond to research-based recommendations for alternative incentives.
1-6 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center on State Systems and

Employment

Children’s Hospital

Institute for Community Inclusion

300 Longwood Avenue

Boston, MA 02115

ici@tch.harvard.edu

http://www.childrenshospital.org/ici/rrtc

Principal Investigator: William E. Kiernan, PhD

Public Contact: John Butterworth, PhD, 617/355-7074; Fax: 617/355-7940

Project Number: H133B980037

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000

Abstract: This Center identifies effective practices in coordinated employment efforts and facilitates

such development at local, regional, and state levels. It also influences policy, practice, and perceptions on the national level. Project activities include investigations, technical assistance, and public

policy reviews focused on: (1) examining state service systems, including VR, mental health, mental

retardation, employment and training service (including one-stop career centers and welfare-to-work

programs), and education to document promising policies and practices reflecting integrated and

coordinated approaches to employment of people with disabilities; (2) documenting actual employment outcomes for people with disabilities through the analysis of national, state, and local data

collection systems; (3) documenting strategies state agencies use for overcoming barriers to employment at the state and local levels; (4) examining, documenting, and disseminating practices at the

state level that respond to the employment and support needs of SSI and SSDI beneficiaries; and (5)

reviewing and evaluating strategies and approaches to develop a more integrated employment approach at the federal and state levels, in order to enhance the employment of people with disabilities.
Employment Outcomes 1-7

Rehabilitation Research and Training Centers (RRTCs)

Mississippi

RRTC on Improving Vocational Rehabilitation Services for

Individuals Who Are Blind or Have Severe Visual Impairments

Mississippi State University

P.O. Box 6156

Mississippi State, MS 36672

schaefer@ra.msstate.edu

http://www.blind.msstate.edu

Principal Investigator: J. Elton Moore, PhD, 662/325-2001

Public Contact: Kelly Schaefer, 662/325-2001 (V); 662/325-8693 (TTY); Fax: 662/325-8989

Project Number: H133B010101

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $600,000

Abstract: This program includes a variety of research and training activities that focus on improving

VR services for individuals who are blind or have severe visual impairments. Activities include: (1)

investigating and documenting the impact of changes in disability and employment legislation on the

unique employment-related needs of individuals who are blind or have visual impairments, as well

as their impact on service delivery options and policy; (2) investigating, documenting, and analyzing

existent state and federal data sets to determine different employment outcomes for persons who are

blind or have visual impairments and the relationship of the outcomes to client and service provider

characteristics; (3) investigating and documenting how state VR agencies, other public agencies, and

private service providers overcome environmental barriers in order to improve employment outcomes for individuals who are blind or have visual impairments; (4) developing a national information and resource referral database for the training needs of state business enterprise program facilities, developing and delivering training programs to meet the identified training needs, and

developing measures that can be used to evaluate the efficacy of the training; (5) conducting three

conferences to train VR staff on state-of-the-art information and computer technology for individuals

who are blind or have visual impairments; and (6) conducting a coordinated and advanced program

of training in rehabilitation research focusing on blindness and low vision, including training in

applied research methodology that is designed to increase the number of qualified doctoral-level

researchers working in the area of blindness rehabilitation.
1-8 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Montana

Rehabilitation Research and Training Center on Rural Rehabilitation

Services

University of Montana

52 Corbin Hall

Missoula, MT 59812-7056

muarid@selway.umt.edu

http://ruralinstitute.umt.edu/rtcrural

Principal Investigator: Tom Seekins, PhD

Public Contact: 888/268-2743 (V, information service only); 406/243-5467 (V/TTY); Rural

Disability Information Network [RUDI] BBS numbers: 406/243-2318; 800/961-9610 (In MT

and WY); Fax: 406/243-2349

Project Number: H133B70017

Start Date: September 1, 1997

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 97 $500,000; FY 98 $550,000; FY 99 $555,000; FY 00 $500,000; FY 01

$550,000

Abstract: This RRTC conducts and disseminates research and provides training that improves the

capacity of rural environments to support people with disabilities in living and working independently. Rural Employment and Economic Development Projects concentrate on employment and VR

service needs, including self-employment as a vocational option for rural people with disabilities.

These project components explore the role of rural economic development in meeting the needs of

people with disabilities, and ways that rural citizens with disabilities can assume community leadership. Rural Community Development, Independent Living, and Telecommunications components

look at how rural independent living services, transportation services, accessible housing, and telecommunications are funded, and ways to improve rural access to these services. Health Care projects

conduct research to improve access to rural health care services, including health promotion activities that might reduce the incidence of secondary conditions. American Indian project components

work with American Indian tribes to develop culturally sensitive ways to discuss disability issues,

such as ensuring environmental, programmatic, and social access for tribal members with disabilities; and developing appropriate long-term care options for elders and people with disabilities or

chronic conditions. Methodology: the RRTC approaches its research areas from a community psychology perspective. Cross-cutting measures of importance include participation, engagement, and a

psychological sense of community. This project participates in the NIDRR Scholars program, providing motivated undergraduates with internship experience in disability research.
Employment Outcomes 1-9

Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center for Economic Research

on Employment Policy for Persons with Disabilities

Cornell University

Program on Employment and Disability

School of Industrial and Labor Relations

106 ILR Extension Building

Ithaca, NY 14853-3901

smb23@cornell.edu

http://www.ilr.cornell.edu/ped/dep/rrtc.html

Principal Investigator: Susanne Bruyère, PhD; Richard Burkhauser, PhD; David Stapleton, PhD

Public Contact: Susanne Bruyère, PhD, 607/255-7727 (V); 607/255-2891 (TTY); Fax: 607/255-

2763

Project Number: H133B980038

Start Date: December 16, 1998

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000

Abstract: Using principles of economics, this project conducts policy research on how environmental factors influence the work outcomes of people with disabilities. Research also addresses critical

aspects of employment outcomes, recognizing the heterogeneity of people with disabilities, and

explains the importance of interactions among the multiplicity of programs intended to meet the

employment needs of people with disabilities. Components include: (1) a comprehensive analysis,

using existing panel data, of the current employment status of people with disabilities; (2) a longitudinal analysis of the effects of labor market change on the employment and earnings of people with

disabilities; (3) a longitudinal analysis of return-to-work after the onset of a disability; (4) a longitudinal analysis of the impact of civil rights protections on the employment and earnings of people

with disabilities; (5) identification and analysis of policies that foster or impede the participation of

transitioning students in rehabilitation or employment service programs; and (6) analysis of emerging and important issues affecting the employment of people with disabilities. This project participates in the NIDRR Scholars program, providing motivated undergraduates with internship experience in disability research.
1-10 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Ohio

Rehabilitation Research and Training Center on Drugs and Disability

Wright State University

School of Medicine

Substance Abuse Resources and Disability Issues (SARDI)

P.O. Box 927

Dayton, OH 45401-0927

sardi@wright.edu

http://www.sardi.wright.edu

Principal Investigator: Dennis C. Moore, EdD

Public Contact: Jo Ann Ford, 937/775-1484 (V/TTY); Fax: 937/775-1495

Project Number: H133B70018

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 97 $499,369; FY 98 $602,294; FY 99 $602,294; FY 00 $603,663; FY 01

$603,663

Abstract: This project conducts epidemiological and evaluative studies of substance abuse and

substance abuse services for consumers of state VR programs. Activities address substance abuse as

it co-exists with other disabilities; all components of the RRTC are designed to interrelate and

synergistically build on each other. The research components include longitudinal and multisite

studies to address more advanced research questions, and quantitative/qualitative methods to investigate VR issues for people with HIV. The training components use a variety of materials, venues, and

trainers in order to address needs within pre- and in-service populations. Training and dissemination

components also include extensive use of distance learning media, especially use of the Internet to

provide professionals and consumers with timely and relevant information. Stakeholders’ concerns

and interests are addressed by several mechanisms, including a formal subcontract with the National

Association on Alcohol, Drugs, and Disability. This project is one component of a number of state

and federally funded entities in the SARDI (Substance Abuse Resources & Disability Issues) Center.

Multiple collaborations are delineated with federal agencies, including the Substance Abuse and

Mental Health Services Administration, as well as professional and consumer organizations, national

clearinghouses, other RRTCs, and institutions of higher education.
Employment Outcomes 1-11

Rehabilitation Research and Training Centers (RRTCs)

Pennsylvania

The MRI/Penn Training Center on Vocational Rehabilitation Services

for Persons with Long-Term Mental Illness

Matrix Research Institute

100 North 17th Street, 10th Floor

Philadelphia, PA 19103

workmri@aol.com

http://www.matrixresearch.org

Principal Investigator: Daniel J. Raudenbush, PhD; Trevor Hadley, PhD

Public Contact: Donald J. Dellario, PhD, 215/569-2240 (V); 215/569-8098 (TTY); Fax: 215/569-

2806

Project Number: H133B70007

Start Date: June 5, 1997

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 97 $500,000; FY 98 $500,000; FY 99 $500,000; FY 00 $500,000; FY 01

$500,000

Abstract: This RRTC focuses on four research areas: (1) improving the work incentives of the

Social Security system, (2) linking client characteristics and program design to client outcomes, (3)

exploring employer/employee relationships, and (4) examining VR’s relationship to behavioral

managed care systems. It also focuses on four training issues: (1) improving rehabilitation research

skills; (2) developing mental health/VR curricula for human services, social work, and nursing; (3)

assessing training methodologies in the field; and (4) expanding online dissemination to the field.
1-12 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Virginia

Rehabilitation Research and Training Center on Workplace Supports

Virginia Commonwealth University

Rehabilitation Research and Training Center on Workplace Supports

1314 West Main Street, Box 842011

Richmond, VA 23284-2011

tcblanke@saturn.vcu.edu

http://www.worksupport.com

Principal Investigator: Paul Wehman, PhD

Public Contact: Valerie Brooke, Associate Director, 804/828-1851 (V); 804/828-2494 (TTY); Fax:

804/828-2193

Project Number: H133B980036

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 98 $699,992; FY 99 $699,992; FY 00 $699,992; FY 01 $699,992

Abstract: This Center helps to increase the national employment rate among people with disabilities

by identifying factors in the work environment that inhibit or enhance employment outcomes and by

sharing the results with the business community. Researchers: (1) analyze existing or new financial

incentives to find those that encourage enterprises to hire or retrain workers with disabilities; (2)

measure the effectiveness of disability management and return-to-work strategies; (3) assess employers’ need for information, training, and resources; (4) conduct, in business settings, interventions that

respond to employer needs; (5) analyze the interventions to determine their effectiveness; (6) determine the impact of changes in work structures such as telecommuting and self-employment on the

employment outcomes of people with disabilities. Stakeholders who benefit from these research,

training, technical assistance, and dissemination efforts include business personnel; rehabilitation

service personnel; federal and state policy-makers; people with disabilities; their guardians, advocates, and authorized representatives; students; and the general public.
Employment Outcomes 1-13

Rehabilitation Research and Training Centers (RRTCs)

Wisconsin

Rehabilitation Research and Training Center on Community

Rehabilitation Programs to Improve Employment Outcomes

University of Wisconsin/Stout

Stout Vocational Rehabilitation Institute

College of Human Development

214 Tenth Avenue

Menomonie, WI 54751

rtc@uwstout.edu

http://www.rtc.uwstout.edu

Principal Investigator: Fredrick E. Menz, PhD

Public Contact: 715/232-1389 (V); 715/232-5025 (TTY); Fax: 715/232-2251

Project Number: H133B980040

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000

Abstract: This project engages community-based rehabilitation programs (CRPs) and state rehabilitation programs in an effort to open multiple funding sources for rehabilitation and habilitation

services and employment opportunities for people with disabilities. The project includes a series of

interrelated studies directed toward changing outcomes and determining CRP capacities to affect the

economic status of people with disabilities in their communities, and it develops a complementary

methodology for achieving utilization and application of the new knowledge. Primary research tasks:

(1) examining how CRPs are serving people with disabilities from alternate sources of funding; (2)

determining the extent to which consumers pursue and receive services, compared to the intentions

of the Rehabilitation Act; (3) exploring what funding, service, and strategy capacities exist to address those intentions more coherently at the community level; (4) devising and demonstrating

practice-program alternatives that materially improve outcomes from CRPs; and (5) clarifying how

CRPs as an industry can be enjoined as a complementary resource to improve the economic and

community integration status of people with disabilities. The project establishes a publicly accessible

national database of core information on CRPs, and includes training, technical assistance, and

dissemination activities.
1-14 Employment Outcomes

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Iowa

Model Distance-Learning Computer Training Program for Blind and

Visually Impaired Individuals

Iowa Department for the Blind

524 Fourth Street

Des Moines, IA 50309

assist@blind.state.ia.us

http://www.blind.state.ia.us/assist

Principal Investigator: Karen A. Keninger

Public Contact: 515/281-1291; Fax: 515/281-1263

Project Number: H133A010104

Start Date: December 1, 2001

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 01 $299,565

Abstract: This project creates a model distance-learning program that delivers computer training to

people who are blind or who have visual impairments. The purpose of this program is to increase IT

educational opportunities and employability in the IT field. Project objectives include: (1) developing a model distance-learning computer training program for people who are blind that results in

employment in the IT field; (2) developing 13 distance-learning computer training courses for

individuals who are blind or who have visual impairments and VR professionals; (3) training and

preparing 150 individuals who are blind or who have visual impairments for Microsoft Office certification and thus prepare them for entry-level IT positions; (4) training 50 people who are blind and

VR professionals to provide computer training to job seekers who are blind, thus increasing future IT

educational opportunities for people who are blind and those who have visual impairments; and (5)

disseminating training materials and research results to agencies serving individuals who are blind or

who have visual impairments.
Employment Outcomes 1-15

Disability and Rehabilitation Research Projects

Iowa

I.T. Works

University of Iowa

Law, Health, Policy, and Disability Center

431 Boyd Law Building

Iowa City, IA 52242

http://www.its.uiowa.edu/law

Principal Investigator: Peter D. Blanck, PhD, JD, 319/335-9043

Public Contact: Michael Morris; James Schmeling, 202/721-0120 (Morris); 319/335-8459

(Schmeling); Fax: 319/335-9098 (Blanck)

Project Number: H133A011803

Start Date: November 1, 2001

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $299,935

Abstract: The goal of the I.T. Works project is to identify barriers to and facilitators of the hiring,

retention, advancement, and wages of individuals with disabilities. Research also shows that the

percentage of working-age individuals with disabilities in full- or part-time positions is substantially

lower than the percentage of working-age people without a disability, and there is a demand for

trained IT workers. Increasing the employment of individuals with disabilities in IT-related jobs

would increase the employment of individuals with disabilities and reduce the shortage for trained IT

workers. Research activities for this project include a theoretical model in which predictive measures

include environmental factors, organizational factors, attitudinal factors, and individual characteristics. Outcome measures in the model include hiring rate, advancement rate, retention rate, and wages

of individuals with disabilities. Training activities allow for the distribution of the research findings

to diverse target audiences, including employers, IT trainers and professionals, persons with disabilities in diverse employment settings, other researchers, and relevant policy-makers. Target audiences

also include IT employers; IT training certification bodies; human resource managers; community

colleges and university continuing education programs; and Centers for Independent Living and

other disability-related organizations.
1-16 Employment Outcomes

Disability and Rehabilitation Research Projects

Massachusetts

Working It Out Together: Women with Disabilities and Employment

Children’s Hospital

Institute for Community Inclusion

300 Longwood Avenue

Boston, MA 02115

foley_s@a1.tch.harvard.edu

http://www.childrenshospital.org/ici

Principal Investigator: Judith Palfrey, MD; Susan Foley, PhD, 617/355-6714 (Palfrey); 617/355-

2075 (Foley)

Public Contact: Susan Foley, 617/355-2075; Fax: 617/355-7940

Project Number: H133A990019

Start Date: November 1, 1999

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 99 $199,861; FY 00 $199,828; FY 01 199,804

Abstract: This project explores how to improve the economic status of working women with disabilities. In order to improve programs and service to assist these women, the project develops a

national snapshot of the experiences of working women with disabilities and provides statistics.

Research examines workplace supports, including income supports, public services, and employment

outcomes, that have been the most beneficial, what obstacles remain, and how peer support and

mentoring fit into the basket of supports. The project also develops mentorship and peer support

strategies that can be used in the future by women with disabilities, service providers, and researchers.
Employment Outcomes 1-17

Disability and Rehabilitation Research Projects

Missouri

Preparing Avenues for Competitive Employment in Information

Technology (PACE-IT) Project

University of Missouri/Columbia

Educational and Counseling Psychology

205 Lewis Hall

Columbia, MO 65211

hollidayg@missouri.edu

Principal Investigator: Greg Holliday, PhD, 573/882-8329

Public Contact: Lee Henson, Project Coordinator, 573/884-7278; Fax: 573/884-3399

Project Number: H133A011802

Start Date: November 1, 2001

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $293,183

Abstract: Preparing Avenues for Competitive Employment in Information Technology (PACE-IT)

develops a comprehensive, person-centered system that assists local students with disabilities in their

transition to professional employment in IT-related careers following graduation. The project ensures

that students with disabilities at the University of Missouri-Columbia (MU) engage in experiential

opportunities in IT-related work settings with appropriate support. Participants also receive individualized accommodations, electronic portfolios, and professional mentoring in their chosen fields to

enable them to be competitive in the IT job market upon graduation. The partnership involves university student services; departments of state government, agencies, government officials; and area

businesses (totaling 21 entities).
1-18 Employment Outcomes

Disability and Rehabilitation Research Projects

New York

A Four-Year Research and Demonstration Project to Address Ways to

Improve the Employment Practices Covered by Title I of the

Americans with Disabilities Act (ADA)

Cornell University

106 ILR Extension Building

Ithaca, NY 14853-3901

smb23@cornell.edu

http://www.ilr.cornell.edu/ped

Principal Investigator: Susanne Bruyère, PhD, 607/255-7727 (V)

Public Contact: Deborah Fisher, 607/255-3079 (V); 607/255-2891 (TTY); Fax: 607/255-2763

Project Number: H133A70005

Start Date: October 1, 1997

Length: 48 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 97 $249,958; FY 98 $249,804; FY 99 $249,804; FY 00 $249,855; FY 01 (Nocost extension through 1/31/02)

Abstract: This project addresses ways to improve the employment practices covered by Title I of the

ADA. The purpose of this effort is to investigate the impact of the ADA on the employment practices

of private sector small, medium, and large businesses. The intended outcome is to assist in the

identification of employment practices that have been the most challenging in implementing the

ADA, and to identify interventions that can be used by private sector employers and people with

disabilities to address these challenging employment practices. Employment policy and practices

that enhance both the hiring and retention of workers with disabilities are examined. A representative

sample of small, medium, and large private sector employers was selected for study from the membership of the Washington Business Group on Health and the Society for Human Resources Management. A survey was conducted of almost 1,000 private-sector employers and the results have been

used to identify specific interventions to address remaining barriers. The study is conducted in

collaboration with the Washington Business Group on Health, the Society for Human Resource

Management, and The Lewin Group.
Employment Outcomes 1-19

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

Arkansas

Reaching Hard of Hearing Workers in the Mainstream: Implications

for Consumers and Service Professionals

University of Arkansas/Little Rock

College of Education

4601 West Markham Street

Little Rock, AR 72205

dwatson@comp.uark.edu

http://www.uark.edu/depts/rehabres

Principal Investigator: Douglas Watson, PhD

Public Contact: 501/686-9691; Fax: 501/686-9698

Project Number: H133G010156

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $150,000

Abstract: This project investigates the utilization of rehabilitation services by hard of hearing

individuals. Most existing studies of this population have been limited to convenience samples, a

methodological approach that is likely to present a fragmented and potentially inaccurate picture of

these workers and their VR needs. Research with representative samples of hard-of-hearing workers

is critically needed so results can be obtained that are more valid. Additionally, the project studies

the existing practices and policies used by VR professionals as they deliver rehabilitation and employment services to hard-of-hearing adults. These professionals can offer valuable insights into

their abilities to serve this population.
1-20 Employment Outcomes

Field-Initiated Projects (FIPs)

Illinois

Comparison of Two Employment Models for Consumers with Severe

Mental Illness

The Thresholds

4101 North Ravenswood Avenue

Chicago, IL 60613

taffy@thresholds.org

Principal Investigator: Taffy (M.L.) McCoy, PhD

Public Contact: 773/880-6260, ext. 230; Fax: 773/880-5755

Project Number: H133G90155

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $150,000; FY 00 $150,000; FY 01 $150,000

Abstract: This project conducts a randomized controlled trial comparing supported employment

with well-established, comprehensive psychiatric rehabilitation approaches. It also investigates

interactions between consumer characteristics and employment approaches, toward an understanding

of the best VR strategies for people of color, especially people from the African American community. This study compares the effectiveness of two important, popular employment models for people

with Severe Mental Illness (SMI). The Diversified Placement Approach (DPA) offers a gradual,

stepwise preparation for competitive employment, including prevocational training, agency-run

business opportunities, group placements, individual placements, and ultimately movement into

independent employment, all available on a flexible, individualized basis without fixed time limits.

The second model is a supported employment model developed in New Hampshire, known as

Individual Placement and Support (IPS). IPS is a supported employment approach for individuals

with SMI. As a consumer-oriented approach, key features of the IPS model include individualized

planning with careful attention to consumer preferences in the job matching process, close coordination between rehabilitation and treatment, and rapid job search.
Employment Outcomes 1-21

Field-Initiated Projects (FIPs)

Massachusetts

The Impact of a Rehabilitation Introduction Group on State

Vocational Rehabilitation Outcomes

Massachusetts Rehabilitation Commission

Psychiatric Rehabilitation Training Program

27-43 Wormwood Street

Boston, MA 02210-1616

thomas.mccarthy@mrc.state.ma.us

Principal Investigator: Thomas P. McCarthy, ScD, CRC

Public Contact: 617/204-3861; Fax: 617/787-2744

Project Number: H133G70098

Start Date: September 1, 1997

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 97 $83,366; FY 98 $76,069; FY 99 $85,178; FY 01 (No-cost extension

through 8/31/02)

Abstract: This study helps people with severe psychiatric disabilities make informed decisions

about pursuing vocational rehabilitation and studies the specific cognitive factors that correlate with

rehabilitation readiness. A total of 42 subjects participate in Rehabilitation Introduction Groups

(RIGs) prior to entry into state vocational rehabilitation (SVR). An 18-month follow-up compares a

representative RIG sample to SVR clients who did not participate in the RIGs in order to assess the

impact of the RIG on SVR process, outcomes, and measures of readiness.
1-22 Employment Outcomes

Field-Initiated Projects (FIPs)

Massachusetts

Exploratory Study of the Relationship Between Sustained Employment

and Psychosocial Adjustment of People with Psychiatric Disabilities

Boston University

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue West

Boston, MA 02215

zlatka@bu.edu

http://www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133G80124

Start Date: July 1, 1998

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $124,998; FY 99 $125,000; FY 00 $125,000; FY 01 (No-cost extension

through 3/31/02)

Abstract: This project studies the relationship between successful employment of people with

psychiatric disabilities and their overall level of psychosocial adjustment. In this study the concept of

psychosocial adjustment is related to the concept of recovery, described as a unique process of

changing one’s attitudes, values, feelings, goals, skills, and roles. In this way, recovery is conceptualized as the core of the process of psychosocial adjustment, since it involves the internal restructuring

of the person and is expected to lead not only to the person’s adaptation to the illness but also to a

significant improvement and a qualitatively different functioning of the person. From this perspective, this study explores the relationship of sustained competitive employment to consumers’ psychosocial functioning. The relationship of consumers’ vocational and psychosocial functioning over

time is explored as well.
Employment Outcomes 1-23

Field-Initiated Projects (FIPs)

Massachusetts

An Exploratory Study of the Factors Determining the Vocational

Recovery of People with Psychiatric Disabilities

Boston University

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue West

Boston, MA 02215-1303

zlatka@bu.edu

http://www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133G010113

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $148,989

Abstract: This project studies factors that determine the vocational recovery of persons with psychiatric disabilities. Vocational recovery is examined as an important aspect of recovery from serious

mental illness and is defined as preserving, regaining, or acquiring competitive employment despite

being affected by a disabling psychiatric condition. The project seeks to explore the major factors

that promote vocational recovery from serious mental illness based on the experiences of individuals

who made the transition from severe work dysfunction, measured through the receipt of Social

Security income (SSI/SSDI), to full-time or part-time sustained competitive employment. Activities

include: (1) studying the major subjective and objective factors influencing mental health consumers’ capacity to overcome severe work dysfunction and sustain vocational recovery; (2) studying the

indicators for consumers’ readiness for financial self-sufficiency examined as an essential factor

determining vocational recovery from serious mental illness; and (3) disseminating the results of the

study to various vocational and psychosocial rehabilitation programs, self-help groups, the broad

mental health community, employers, and the general public.
1-24 Employment Outcomes

Field-Initiated Projects (FIPs)

Montana

Self-Employment Technology Transfer (SETT)

University of Montana

Rural Institute on Disabilities

52 Corbin Hall

Missoula, MT 59812

nancy@selway.umt.edu

http://ruralinstitute.umt.edu

Principal Investigator: Nancy Arnold, PhD

Public Contact: 406/243-2469; Fax: 406/243-2349

Project Number: H133G000189

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $149,970; FY 01 $149,487

Abstract: The Self-Employment Technology Transfer (SETT) project has developed and field tested

a VR self-employment support model based on extensive research. This project is designed to

develop, demonstrate, and evaluate methods for facilitating the widespread adoption by practicing

VR counselors of this empirically derived model of standards and practices in a cost-effective manner and in a relatively short time. It is estimated that achieving this goal benefits 25,560 to 62,850

consumers of VR services annually. Further it is believed that such a technology transfer model for

disseminating empirically derived social technology from research into practice has the potential to

shape the content, methods, and goals of future disability and rehabilitation research. There has been

an explosion of interest in self-employment for people with disabilities. More than a half-million

people with disabilities report owning their own businesses and people with disabilities are nearly

twice as likely to be self-employed as those in the general population. While self-employment is not

for everyone, it clearly is a viable option used by many. Yet, VR agencies nationally help fewer than

2.5 percent of their consumer achieve self-employment. Research shows that few of the estimated

9,500 practicing VR counselors have the knowledge or skills to support consumers who choose to

pursue self-employment. Anecdotal reports indicate that VR agencies and staff have a significant

interest in developing methods to respond to this consumer demand. While a few programs have

served as models for promoting self-employment, none are designed specifically for VR counselors

or organized for such wide-scale dissemination.
Employment Outcomes 1-25

Field-Initiated Projects (FIPs)

New York

Medication Management and Successful Work Transition in Persons

with HIV/AIDS

Center for Essential Management Services

420 Jericho Turnpike, Suite 300

Jericho, NY 11753

cems1@prodigy.net

Principal Investigator: David Vandergoot, PhD

Public Contact: 516/827-5960; Fax: 516/938-9477

Project Number: H133G000195

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $149,998; FY 01 $149,998

Abstract: This project conducts survey research and a series of focus groups with graduates of a

comprehensive VR program. The purpose is to identify effective strategies used by persons with

HIV/AIDS for managing combination antiretroviral medications in the workplace. Men and women

with HIV/AIDS are a population from the new universe of disability; many are from ethnically

diverse backgrounds and are economically disadvantaged. Within this population NIDRR-funded

research has found a high frequency of hidden TBI and a strong correlation between health and

employment. The information gleaned from the survey research and focus groups, as well as other

research on how people with HIV/AIDS can maintain their health, is used to create rehabilitation

interventions for people with HIV/AIDS to enter the labor market and sustain employment. Medication management is conceptualized in its broadest sense to include adherence to prescribed treatment

protocols, management of medication side effects and other HIV/AIDS-related symptoms while

balancing daily life roles, routines, activities, expectations, and demands. The effectiveness of these

rehabilitation interventions is evaluated in the context of a community-based employment agency in

New York City—Mobilizing Talents and Skills (MTS)—that serves men and women with HIV/

AIDS from ethnically diverse backgrounds. The interventions are expected to enhance the VR

services provided by MTS and combine a series of psycho-educational groups with individualized

service coordination and counseling.
1-26 Employment Outcomes

Field-Initiated Projects (FIPs)

New York

Measuring Employer Openness to Hiring People with Disabilities:

Development of Expanded Labor Market Survey

Syracuse University

Counseling and Human Services

257 Huntington Hall

Syracuse, NY 13244-2340

ddgilbri@syr.edu

http://soeweb.syr.edu/faculty/ddgilbri/nidrr

Principal Investigator: Dennis Gilbride, PhD

Public Contact: 315/443-5264; Fax: 315/443-5732

Project Number: H133G000028

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 00 $149,306; FY 01 $147,650

Abstract: This project works to understand the labor market in regards to people with disabilities.

The first goal is to identify the key factors that distinguish employers that are authentically open to

people with disabilities throughout the human resource management process, including recruitment,

selection, training, supervision, accommodation, and promotion. The second goal is to develop a

simple interview protocol (and supportive training materials) that rehabilitation consumers and

counselors can use as part of an enhanced labor market survey to target employers for placement,

employer development, and consulting efforts based upon that employer’s level of openness. Five

objectives help to achieve these goals: (1) develop and convene a consumer advisory panel; (2)

conduct focus groups and interviews with employers in key labor markets; (3) analyze the data to

identify key components of openness; (4) present the data to a consumer advisory panel and a practitioner panel to help develop enhanced labor market survey questions, protocols, and training materials; and (5) disseminate the project results to consumers, practitioners, educators, and employees.

Consumers and rehabilitation professionals can use the enhanced labor market survey to understand

the openness of employers. The Web and CD-ROM versions of the labor market survey illustrate the

key aspects of employer openness with Quicktime movies of employer statements.
Employment Outcomes 1-27

Field-Initiated Projects (FIPs)

North Carolina

Resolving ADA Employment Discrimination Charges

University of North Carolina

The Cecil G. Sheps Center for Health Services Research

725 Airport Road, CB #7590

Chapel Hill, NC 27599-7590

kathyrn_moss@unc.edu

http://www.shepcenter.unc.edu/research_programs/aging/enforcementproj.html

Principal Investigator: Kathryn E. Moss, PhD

Public Contact: 919/966-6061; Fax: 919/966-3811

Project Number: H133G000132

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 00 $149,925; FY 01 $149,591

Abstract: The project’s purpose is to assess the impact of the ADA employment discrimination

service system on the lives of people with disabilities, using data from the computerized charge data

system of the U.S. Equal Employment Opportunity Commission (EEOC). Under Title I of the

Americans with Disabilities Act (ADA), individuals who believe they have been discriminated

against in employment on the basis of a disability may file an administrative charge with either the

EEOC or a state or local Fair Employment Practice Agency (FEPA). During the statute’s first decade

of operation, the EEOC and the FEPAs have become a significant service system for people with

disabilities, handling an average of 30,000 Title I claims each year. Recently, landmark Supreme

Court decisions interpreting the ADA, the EEOC’s implementation of a new charge processing

policy, and their ambitious new mediation program have significantly changed the Title I charge

process and considerably altered the landscape in which EEOC offices and FEPAs process Title I

charges. The aims of the project, therefore, are as follows: (1) to monitor the evolving implementation of Title I of the ADA by the EEOC and the FEPAs, (2) to monitor the evolving implementation

of the EEOC’s new mediation program, and (3) to design and disseminate useful and accessible

information about the Title I charge process for people with disabilities and persons who support

them.
1-28 Employment Outcomes

Field-Initiated Projects (FIPs)

Ohio

Variables Associated with Vocational Success Among Persons with

Severe Mental Illness: An Empirical Study

Cleveland State University

Department of Social Work

2300 Chester Avenue

Cleveland, OH 44115

m.smith@csuohio.edu

Principal Investigator: Mieko Kotake Smith, PhD

Public Contact: 216/687-4738; Fax: 216/687-5590

Project Number: H133G990036

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 99 $138,332; FY 00 $141,462; FY 01 $144,060

Abstract: This project (1) examines the relationships between several variables and vocational

success among people with severe and persistent mental illness; and (2) develops a model of how

those variables together lead to vocational success in this population. Many attempts have been

made to identify factors associated with vocational success among people with severe mental illness,

but no comprehensive portrait of these factors has been developed. The study is carried out at a

community employment collaborative among three community-based rehabilitation service agencies

in Cleveland Ohio that provides a range of vocational services to individuals with severe and persistent mental illness. This study uses a longitudinal design with three data collection points to follow

approximately 300 individuals receiving vocational training; the variables to be examined are in

three areas: personal factors, work environment factors, and other factors. Personal factors include

social functioning, symptomatology, symptom management, and expectations to succeed. Work

environment factors include the employers’ knowledge about mental illness, the work environment,

and pay. Other factors include the fit between employee interests and the actual job, and social

networks.
Employment Outcomes 1-29

Field-Initiated Projects (FIPs)

Virginia

Enhancing Consumer-Counselor Working Relationships in

Rehabilitation: An Empirical Research Investigation of Counselor

Expectancies and Working Alliance as Variables for Optimizing

Consumer-Counselor Relationships, Consumer Satisfaction, and

Rehabilitation Outcomes

Virginia Commonwealth University

Department of Rehabilitation Counseling

P.O. Box 980330

Richmond, VA 23298-0330

bmcbull@vcu.edu

http://www.1tec.com/EARC

Principal Investigator: Brian McMahon, PhD

Public Contact: 804/828-0197; Fax: 804/828-1321

Project Number: H133G80135

Start Date: August 1, 1998

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $124,444; FY 99 $124,767; FY 00 $124,618; FY 01 (No-cost extension

through 2/1/02)

Abstract: This project brings the concept of “consumer involvement” to a place beyond the level of

good intentions, rhetoric, platitude, and legal mandate; it provides practical tools with which relevant

constructs can be measured and changed to build meaningful partnerships. Maximizing the involvement of consumers in the VR process in a meaningful manner can be accomplished if the working

alliance between counselor and consumer is strengthened in a direct and measurable way. The target

audience includes clients with severe disabilities of the state-federal VR program and the counselors

who are employed to provide them with services.
1-30 Employment Outcomes

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Florida

Virtual Interview Exercises for Workplace Success (VIEWS)

Vcom3D, Inc.

3452 Lake Lynda Drive, Suite 260

Orlando, FL 32817

Principal Investigator: Daniel Roush

Public Contact: 407/737-7310, ext. 115; Fax: 407/737-6821

Project Number: ED-01-Q-0003

Start Date: September 1, 2001

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $60,000

Abstract: This project conducts research to develop a prototype computer software program that

provides the opportunity for job seekers who are deaf or hard-of-hearing to practice employment

interviewing skills. This software incorporates SigningAvatarTMtechnology that uses 3-D animated

characters who sign in variants of American Sign Language. The software presents an accessible

virtual interview scenario with interacting characters and the ability to respond to interview questions that are asked frequently. If the user selects a certain number of the best responses to the interview questions, the employer offers the interviewee the job. This software not only provides the

opportunity to practice interviewing skills independently, it may boost the confidence and intrinsic

motivation of the user.
Employment Outcomes 1-31

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Florida

AbilityForum.com

Golden Ventures

3312 West Hawthorne Road

Tampa, FL 33611

dgolden@abilityforum.com

http://www.abilityforum.com

Principal Investigator: Dawn Golden

Public Contact: 813/835-5970; Fax: 813/831-5124

Project Number: ED-00-PO-0219

Start Date: September 1, 2000

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $150,000; FY 01 $150,000

Abstract: This project further develops an Internet-based job opportunity network and social support

Web site for people with disabilities. The goal of Phase II is to enhance the site in order to increase

the use rates and thereby increase the revenue potential of the venture in order to become selfsustaining. Enhancements expand the information sources, content, and features. The Web site

currently includes three main areas: employment, reference materials, and avenues for social support. It is anticipated that a larger number of people with disabilities could be employed if they could

work from their homes. The employment section provides current job postings from around the

country as well as new job search tools. Networks of universities, rehabilitation sites, and partner

Web sites expand the reference area with a broader array of products, educational programs, and

service postings. Other new features include: news updates, events, videos, and finance information.

The Web site is designed for use by persons with a variety of disabilities and is compliant to the Web

Content Accessibility Guidelines. For individuals that are homebound, this provides an exciting

outlet for interaction and growth.
1-32 Employment Outcomes

 Small Business Innovative Research (SBIR), Phase II

Wisconsin

Fair and Appropriate Community Employment (FACE): A

Management Information System (MIS) for Evaluating the Impact of

Employment Programs on Persons with Disabilities

Research Solutions International

FACE Ground Zero

N4807 449th Street

Menomonie, WI 54751

cokerc@charter.net

http://www.rsioffices.com

Principal Investigator: Charles C. Coker, PhD

Public Contact: 715/235-7531; Fax: 715/235-0482

Project Number: SBIR 01-09

Start Date: September 17, 2001

Length: 24 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 01 $149,968

Abstract: This project develops and beta tests a comprehensive management information system

(MIS) at 15 community rehabilitation programs (CRPs) around the nation to fill the need for an MIS

that can evaluate the relationship between services provided and outcomes achieved for consumers

with various disabilities and backgrounds. While several research efforts have employed rigorous

research designs for relating services to outcomes, the retrieval of data from the records of more than

7,000 CRPs who serve nearly 4 million persons with disabilities has met with much less success. In

the past five years, the concept Fair and Appropriate Community Employment (FACE(c)) MIS has

been developed to evaluate the effectiveness and efficiency of their service interventions upon

employment outcomes. This MIS places powerful research and analytic tools directly into the hands

of practitioners for improving outcomes for their consumers. The FACE(c) MIS software prototype

was developed with three modules: Client Tracking/Case Management, Program Evaluation using

managed care techniques, and follow-up based on FACE Profiling(c).
Health and Function

NIDRR’s research focus for health and function addresses problems in individual care,

services, and supports for people with disabilities. Research topics include: medical

rehabilitation; health and wellness programs; service delivery; short and long-term

interventions; systems research; and new and emerging disabilities.

Contents

Rehabilitation Research and Training Centers (RRTCs) ...................................................................... 1

Disability and Rehabilitation Research Projects ................................................................................ 14

Model Burn Injury Systems................................................................................................................ 24

Model Spinal Cord Injury Systems .................................................................................................... 29

Model Traumatic Brain Injury Systems ............................................................................................. 45

Field-Initiated Projects (FIPs) ............................................................................................................ 62

Health and Function 2-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Alabama

Rehabilitation Research and Training Center on Secondary Conditions

of Spinal Cord Injury: Promoting General Health, Well-Being, and

Community Integration Through Home-Based, Self-Directed Care

University of Alabama/Birmingham

Department of Physical Medicine and Rehabilitation

619 - 19th Street South, SRC 529

Birmingham, AL 35249-7330

rtc@sun.rehabm.uab.edu

http://main.uab.edu/show.asp?durki=8762

Principal Investigator: Amie B. Jackson, MD, 205/934-3334 (V); 205/934-3330 (V); 205/934-

4642 (TTY)

Public Contact: Linda Lindsey, Assistant Director, Research Services, 205/934-3283; Fax: 205/

975-4691

Project Number: H133B980016

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 98 $799,993; FY 99 $799,998; FY 00 $799,998; FY 01 $799,998

Abstract: This RRTC conducts coordinated, integrated, and advanced research in the prevention

and treatment of secondary conditions of SCI. The eight interrelated projects include: (1) determine

the effectiveness of cranberry pills to prevent and treat urinary tract infections (UTIs); (2) evaluate

interventions used to prevent and treat UTIs in people with SCI using the University of Alabama/

Birmingham SCI Urologic Database; (3) study the relationship of beverage consumption and water

hardness to the risk of urinary tract stones; (4) address pain following SCI by evaluating SCI pain

classification systems, studying the effectiveness of gabapentine and methadone in relieving certain

types of pain, and developing a method to target those at risk; (5) determine the duration of immune

response to pneumococcal vaccine and the need for revaccination; (6) evaluate a screening tool to

identify people with SCI at high risk for sleep apnea, and evaluate treatments to improve their health

and quality of life; (7) study the use of telemedicine to reduce depression and secondary conditions

among people with SCI and their caregivers through problem solving interventions; and (8) evaluate

and adapt a nationally recognized weight-loss project for a population of people with SCI. A collaborative project with another Center evaluates a computer-based risk assessment and feedback tool

for assessing secondary conditions. This RRTC provides training on research methodology and

information based on research activities to people with disabilities, their families, service providers,

and rehabilitation professionals. Information is disseminated through print media (information

sheets and newsletters), electronically (through the Internet and a fax information service), and

through technical assistance.
2-2 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center in Neuromuscular

Diseases

University of California/Davis

MED: Physical Medicine and Rehabilitation

TB 191

Davis, CA 95616-8655

nmdinfo@ucdavis.edu

http://www.rehabinfo.net

Principal Investigator: Craig McDonald, MD

Public Contact: Kathryn Devereaux, PhD, Training and Information Services Director, 530/752-

2903 (V); Fax: 530/752-3468

Project Number: H133B980008

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $650,000; FY 99 $650,000; FY 00 $650,000; FY 01 $650,000

Abstract: This project conducts research designed to enhance the quality of life of people with

neuromuscular diseases. Through multidisciplinary research and a comprehensive program of

training and information services, the Center serves consumers, physicians, and health care workers.

Program areas include: interventions to preserve functional capacity including management of

weakness and respiratory insufficiency due to muscle wasting, exercise interventions, treatment of

exercise related fatigue, pain interventions, lower limb orthotic interventions, and dietary interventions; interventions to enhance community integration, including incorporating goal-based approaches to community integration, facilitation of healthy adaptation through development of stress

management and coping skills, and resource training for acquisition of disability-related information

through the Internet; genetic testing, information, and research; and training and information services.
Health and Function 2-3

Rehabilitation Research and Training Centers (RRTCs)

California

Aging with Spinal Cord Injury (SCI)

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, 800 West Annex

Downey, CA 90242

rrtcsci@aol.com

http://www.agingwithsci.org

Principal Investigator: Bryan J. Kemp, PhD; Robert L. Waters, MD

Public Contact: Lilli Thompson, Training Director, 562/401-7402; Fax: 562/401-7011

Project Number: H133B70011

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 97 $650,000; FY 98 $650,000; FY 99 $650,000; FY 00 $650,000; FY 01

$650,000

Abstract: The Rehabilitation Research and Training Center (RRTC) on Aging with Spinal Cord

Injury is devoted to understanding the unique problems people with SCI experience as they age.

Topics of research include: the natural course of aging with SCI, cardiovascular disease (CVD) and

risk factors of CVD, pulmonary aspects of aging with SCI, bone loss, functional changes associated

with age and duration of SCI, maintaining employment, treatment of depression, and informal and

formal care systems for people aging with SCI. The RRTC has several goals for education, training,

dissemination, and utilization: (1) to train current and future health, allied health, and rehabilitation

professionals about aging with SCI; (2) to train and develop rehabilitation research professionals in

the area of aging with SCI; (3) to improve adoption and use of RRTC-developed knowledge and

treatment regimens by health and rehabilitation professionals; (4) to disseminate information about

aging with SCI to people with SCI and their families; and (5) to train graduate students and medical

students in advanced knowledge and techniques from studies about aging with SCI. Training and

dissemination occurs through advanced and continuing education courses, local and national conferences, workshops, publications in professional- and consumer-oriented journals, and the Internet.
2-4 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center on Aging with a

Disability

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, 800 West Annex

Downey, CA 90242-4155

gracefg@agingwithdisability.org

http://www.agingwithdisability.org

Principal Investigator: Bryan J. Kemp, PhD

Public Contact: Grace Farwell Granger, Associate Training Director, 562/401-7402; Fax: 562/401-

7011

Project Number: H133B980024

Start Date: September 1, 1998

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000

Abstract: This project assists people who are aging with a disability by conducting a series of

research studies using a database of more than 1,000 people who represent a variety of disabilities

(for example, cerebral palsy, rheumatoid arthritis, stroke, SCI, polio). Research projects include: (1)

the natural course of aging with a disability, (2) assisting family caregivers of people aging with a

disability, (3) improving community integration and adjustment, (4) preventing secondary complications such as diabetes and thyroid disorders, (5) improving bone density through a regimen of

exercise and vitamins, and (6) understanding the role of AT and environmental interventions (EI) in

maintaining functional performance. Training, dissemination, and technical assistance activities

focus on students and professionals in the health, allied health, and rehabilitation fields, as well as

people aging with a disability and their families. Goals include training rehabilitation researchers

knowledgeable about aging with a disability, improving the adoption and utilization of RRTCdeveloped assessment and treatment regimens by health and rehabilitation professionals, and disseminating information about aging with a disability to people with disabilities and their families.

Training and dissemination occurs through advanced and continuing education courses; local,

national, and international conferences; workshops; publications in professional- and consumeroriented journals; and the Internet.
Health and Function 2-5

Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Managed Health Care for Individuals with Disabilities

MedStar Research Institute

NRH Center for Health and Disability Research

1016 - 16th Street Northwest, Suite 400

Washington, DC 20036

gerben.dejong@medstar.net

http://www.ilru.org/mgdcare/index.html

Principal Investigator: Gerben DeJong, PhD, 202/466-1905

Public Contact: Olga Elizabeth Hayes, 202/466-1919; Fax: 202/466-1911

Project Number: H133B70003

Start Date: May 1, 1997

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 97 $499,969; FY 98 $499,988; FY 99 $500,000; FY 00 $700,000; FY 01

$300,000

Abstract: This project provides national leadership on the major health service and health policy

issues facing consumers with disabilities in managed health care arrangements. It: (1) conducts

research; (2) prepares special policy analyses; (3) hosts forums for discussion; (4) presents expert

testimony to Congress and governmental agencies; (5) publishes in the health policy, consumer, and

trade literature; (6) trains graduate students with disabilities in health service research; and (7)

disseminates findings to diverse consumer, provider, payer, academic, and policy-making audiences.

On the state and national levels the project seeks to make managed care and the larger health care

system more responsive to the needs of people with disabilities by acting as a catalyst for the development of new ideas. Program partners are the NRH Center for Health and Disability Research in

Washington DC and the Independent Living Research Utilization (ILRU) center in Houston Texas.
2-6 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

The Consortium for Children and Youth with Disabilities and Special

Health Care Needs.

Georgetown University

Child Development Center

3307 M Street Northwest, Suite 401

Washington, DC 20007

nttrc@georgetown.edu

http://www.consortiumnrrtc.org

Principal Investigator: Phyllis Magrab, PhD

Public Contact: Tammy Abdou, Program Coordinator, 202/687-8617 (V); 202/687-5503 (TTY);

Fax: 202/687-8899

Project Number: H133B001200

Start Date: July 1, 2000

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 00 $699,956; FY 01 $699,947

Abstract: The Consortium improves rehabilitation outcomes for children and youth with disabilities

with special health care needs by increasing the effectiveness of service systems. Using an integrated, multifaceted research program, and related training, dissemination, and technical assistance

activities, the program targets five areas: (1) access issues in pediatric rehabilitation, (2) impact of

cost control strategies on provision of health care, (3) promising practices in transition from pediatric to adult health care, (4) effective telehealth strategies for interdisciplinary service delivery in

remote areas, and (5) training issues in AT. In addition, a variety of strategies utilize this information

and other knowledge to provide training and technical assistance to the target audiences of families,

consumers, providers, researchers, policy-makers, and managed care organizations to improve

rehabilitative services to this population in order to enhance their quality of life and that of their

families. The RRTC is run by the Georgetown University Child Development Center in collaboration with Brandeis University’s Heller School, the University of Florida’s Institute of Child Health

Policy, and Family Voices.
Health and Function 2-7

Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Access to Rehabilitation and Empowerment Opportunities for

Minority Persons with Disabilities

Howard University

2900 Van Ness Street Northwest

Holy Cross, Room 100

Washington, DC 20008

swalker@howard.edu

http://www.law.howard.edu/HURTC/HURTC.html

Principal Investigator: Sylvia Walker, EdD

Public Contact: 202/806-8086; Fax: 202/806-8148

Project Number: H133B000903

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $600,000; FY 01 $600,000

Abstract: The Howard University Research and Training Center for Access to Rehabilitation and

Empowerment Opportunity (HURTC) is implementing a RRTC on Access to Rehabilitation and

Empowerment Opportunities for Minority Persons with Disabilities to help them achieve selfdetermination, economic independence, and full participation in American life. The program of the

Center is designed to attain the following objectives: identify methodological problems determining

the rehabilitation needs of persons with disabilities from minority backgrounds (including subpopulations within these groups) and propose strategies to address these methodological problems;

based on research findings, identify implications for rehabilitation research, training, policy development, and services; assess the outcomes of rehabilitation for persons with disabilities from minority backgrounds as measured by two or more variables (such as functional abilities, wellness, employment, health/wellness, and psychosocial status); analyze the affects of minority status on

rehabilitation outcomes; and identify, develop, and evaluate rehabilitation methodologies, models,

and interventions for specific minority groups. The HURTC collaborates with the Center for Disease

Control, the Center for Minority Health, and a variety of stakeholders including consumers with

disabilities, state agencies, continuing education programs, and community-based organizations.
2-8 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Aging with

Developmental Disabilities

University of Illinois/Chicago

Department of Disability and Human Development

College of Applied Health Sciences MC 626

1640 West Roosevelt Road

Chicago, IL 60608-6904

rrtcamr@uic.edu

http://www.uic.edu/orgs/rrtcamr

Principal Investigator: Tamar Heller, PhD; David Braddock, PhD

Public Contact: Ann Cameron Williams, 800/996-8845 (V); 312/413-1860 (V); 312/413-0453

(TTY); Fax: 312/996-6942

Project Number: H133B980046

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 98 $699,934; FY 99 $699,987; FY 00 $699,985; FY 01 $699,983

Abstract: This project promotes the independence, productivity, community inclusion, full citizenship, and self-determination of older adults with mental retardation through a coordinated program

of research, training, technical assistance, and dissemination activities. The research program aims

to increase knowledge about the changing needs of older adults with mental retardation and their

families as they age, and to increase the effectiveness of innovative approaches, public policies, and

program interventions that provide needed supports and that promote the successful aging of these

adults and their families. It examines how age-related changes in physical and psychological health

affect the ability to function in the community, including home, work, and leisure settings. The

research program also identifies best practices and current public policies that support these adults

and their families. The primary goal is to translate the knowledge gained into practice through

broad-based training, technical assistance, and dissemination to people with mental retardation, their

families, service providers, administrators and policy-makers, advocacy groups, and the general

community. Dissemination vehicles include the Center’s clearinghouse, Web site, and newsletters.

This project participates in the NIDRR Scholars program, providing motivated undergraduates with

internship experience in disability research.
Health and Function 2-9

Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Stroke Rehabilitation

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611

http://www.rrtc-stroke.org/

Principal Investigator: Elliot J. Roth, MD, 312/238-4637

Public Contact: Linda Lovell, Project Coordinator, 312/238-6197; Fax: 312/238-6998

Project Number: H133B980021

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000; FY 01 $800,000

Abstract: This project tests the effectiveness of several stroke rehabilitation strategies and tactics,

trains stroke survivors and professionals, and disseminates knowledge relevant to stroke care. In

order to extend the knowledge base of stroke rehabilitation, produce changes in clinical practice, and

enhance the quality of life of stroke survivors and their families, the Center: (1) identifies, develops,

and evaluates rehabilitation techniques in order to address coexisting and secondary conditions and

improve outcomes for all stroke patients; (2) develops and evaluates standard aerobic exercise

protocols; (3) identifies and evaluates methods to identify and treat depression and other psychological problems associated with stroke; (4) determines the effectiveness of stroke prevention education

provided in a medical rehabilitation setting; (5) evaluates the impact of changes in diagnosis and

medical treatment of stroke on rehabilitation needs; (6) evaluates long-range outcomes for stroke

rehabilitation across different treatment settings; (7) evaluates the impact of stroke practice guidelines on delivery and outcomes of rehabilitation services; (8) provides training on new approaches,

innovations, and the specialized principles and practices of rehabilitation care of individuals with

stoke; (9) provides applied research experience and training in research principles and methods; (10)

disseminates information of new developments in the area of stroke care and research to people with

stroke and their families, rehabilitation professionals, and service providers; and (11) conducts a

state-of-the-science conference. The Center has a large database of information regarding stroke

rehabilitation patients and continues ongoing systems and activities to collect and analyze data

concerning stroke impairment, disability, and social functioning. This project participates in the

NIDRR Scholars program, providing motivated undergraduates with internship experience in disability research.
2-10 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

Missouri

Missouri Arthritis Rehabilitation Research and Training Center

(MARRTC)

University of Missouri/Columbia

Department of Physical Medicine and Rehabilitation

DC330.00

One Hospital Drive

Columbia, MO 65212

bakerv@health.missouri.edu

http://www.muhealth.org/~arthritis

Principal Investigator: Jerry C. Parker, PhD, 573/814-6480

Public Contact: Valerie Baker, 573/884-1499; Fax: 573/884-3020

Project Number: H133B980022

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000; FY 01 $800,000

Abstract: MARRTC helps to prevent and manage disability in people with arthritis and related

musculoskeletal disease by providing leadership at the national level through three strategies: (1)

MARRTC conducts state-of-the-art rehabilitation and health services research that addresses the

needs of people with arthritis and related musculoskeletal diseases in the following areas: exercise

and fitness, interventions for psychological well-being and pain, job accommodations and employment, and health and wellness using participatory action research (PAR) strategies to emphasize the

inclusion of consumers in all phases of the research process; (2) MARRTC provides training for

physicians and other health care professionals in the rehabilitative aspects of rheumatologic practice,

including university-based programs, national presentations, research capacity-building, and publications aimed at improving clinical skills; and (3) MARRTC disseminates rehabilitation research

and technology transfer for the empowerment of people with arthritis to help them to minimize

disability, maintain employment, and improve functional status.
Health and Function 2-11

Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center: Health and Wellness

Consortium

Oregon Health and Science University

Oregon Institute on Disability and Development

Child Development and Rehabilitation Center

707 Southwest Gaines

P.O. Box 574

Portland, OR 97207-0574

minnichl@ohsu.edu

http://www.healthwellness.org

Principal Investigator: Gloria Krahn, PhD, 503/494-8364

Public Contact: Carla Culley, Project Coordinator, 503/494-9557; Fax: 503/494-6868

Project Number: H133B990019

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $700,000; FY 00 $700,000; FY 01 $700,000

Abstract: The Center has a comprehensive program of research, training, technical assistance, and

dissemination with primary attention given to the physical and mental aspects of health for people

with long-lasting disabilities such as cerebral palsy, SCI, multiple sclerosis, amputation, and postpolio. Interconnected research areas include evaluating health assessment definitions, practices,

policies, and measurement, and their impact on health promotion and investigating the relationship

between selected health maintenance strategies and the incidence and severity of secondary conditions and other functional outcomes. Center projects examine the practices of exemplary generic and

specialized health promotion programs; analyze the health behaviors and related functional outcomes of individuals with disabilities; examine the relationship between health definitions, practices,

and secondary conditions to develop a screening tool for health and wellness for people with disabilities; and investigate the association between disability and differential detection of cancer. The

Center’s third area of focus centers on identifying and evaluating best practices in health promotion.

These include an Internet-delivered reproductive health promotion package, strategies for enhancing

the participation of individuals with disabilities in self-directed physical activity, the accessibility of

alcohol and drug treatment programs to people with disabilities, and methods for culturally responsive health promotion. An additional research focus is the use and efficacy of complimentary alternative medicine among people with these specific long-term disabilities.
2-12 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

Texas

Rehabilitation Research and Training Center on Rehabilitation

Interventions Following Traumatic Brain Injury

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

1333 Moursund Avenue

Houston, TX 77030-3498

whigh@bcm.tmc.edu

http://www.braininjuryresearch.org

Principal Investigator: Walter M. High Jr., PhD

Public Contact: 713/666-9550; Fax: 713/668-5210

Project Number: H133B990014

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $650,000; FY 00 $650,000; FY 01 $650,000

Abstract: The Center promotes the scientific advancement of rehabilitation research by focusing on

several areas identified as needing further research. These include areas of weakness in the current

knowledge and future research regarding TBI recovery and rehabilitation effectiveness: improvement of the diagnosis and treatment of persons with mild TBI; development of interventions to assist

school-age children with TBI; the needs of minority groups members with TBI; evaluation of the

effectiveness of rehabilitation interventions; and treatment for the family members of people with

TBI. Activities include publishing an informational and technical assistance resource for consumers

and professionals; training for medical and neuropsychological fellows in rehabilitation research;

coordinating a state-of-the-science conference on mild TBI; and producing an educational videotape

to train family members in effective coping skills. Through representation on the advisory committees, consumers are involved in all aspects of planning and evaluating research and training activities.
Health and Function 2-13

Rehabilitation Research and Training Centers (RRTCs)

Washington

Multiple Sclerosis Rehabilitation Research and Training Center

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98195-6490

msrtc@u.washington.edu

http://www.msrrtc.washington.edu

Principal Investigator: George H. Kraft, MD, 206/543-7272

Public Contact: Carolyne Dollar, 206/221-5302; Fax: 206/685-3244

Project Number: H133B980017

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 98 $691,314; FY 99 $697,978; FY 00 $697,978; FY 01 $695,684

Abstract: This Center promotes health and wellness of people with multiple sclerosis (MS) and

improves their functioning and employment status. Fundamental to the project is a health survey

administered to people with MS throughout the Northwest region. Information from the survey is

fed into six project components: (1) promoting wellness among people with MS through brief

counseling methods; (2) improving the functioning of people with MS through three studies: improving psychological distress using pharmacological intervention, evaluating the combined effect

of cooling and exercise on performance, and improving function through cognitive rehabilitation

interventions; (3) exploring the employment status of people with MS; (4) designing practical

interventions and workplace modifications; (5) studying the interaction between aging and MS; and

(6) exploring the effects of gender, culture, socioeconomic status, ethnicity, place of residence, and

insurance coverage on people with MS, in regard to symptomology and response to treatments.

Researchers develop and apply interventions and conduct follow-up surveys to evaluate the effectiveness of the intervention strategies. This Center collaborates with the RRTC on Substance Abuse,

the Consortium of MS Centers, the National MS Society, and the MS Association of King County.
2-14 Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

Lifetime Outcomes and Needs: Refining the Understanding of Aging

with Spinal Cord Injury

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80110-2811

susie@craighospital.org

http://www.craighospital.org

Principal Investigator: Daniel P. Lammertse, PhD, 303/789-8220

Public Contact: Susan Charlifue, 303/789-8306; Fax: 303/789-8441

Project Number: H133A011108

Start Date: September 1, 2001

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $350,000

Abstract: This project explores the incidence and prevalence of several health and psychosocial

conditions that accompany living many years with SCI. Also studied in this comprehensive, longitudinal, multicenter effort are the services available to individuals with SCI as they attempt to address

these conditions throughout their lives. The study expands the longitudinal database, addressing

emerging issues of aging with SCI in greater detail, and expands efforts to share findings with a

variety of constituents. The eight areas of focus include: (1) secondary conditions from five to 25

years post-injury, (2) new analytic techniques with longitudinal datasets, (3) chronic pain, (4) access

to and satisfaction with health services, (5) personal assistance services, (6) spirituality and its

effects on health outcomes and quality of life, (7) the role of perceived stress and self-reported

problems on the presence or absence of secondary conditions and in relation to one’s overall wellbeing, and (8) trends in quality of life and health. This longitudinal study builds on two previous

data collection points. It includes a broad, comprehensive examination of secondary conditions, both

physical and psychosocial, and several new areas of inquiry investigated in-depth.
Health and Function 2-15

Disability and Rehabilitation Research Projects

District of Columbia

Rehabilitation Services for Persons with Emergent Disabilities:

Medical Rehabilitation Services for Persons with Disabilities

Medlantic Research Institute

National Rehabilitation Hospital Research Center

102 Irving Street Northwest

Washington, DC 20010

gerben.dejong@medstar.net

http://www.nrhrehab.org

Principal Investigator: Gerben DeJong, PhD, 202/466-1905

Public Contact: Olga Elizabeth Hayes, 202/466-1919; Fax: 202/466-1911

Project Number: H133A990013

Start Date: August 8, 1999

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 99 $200,000; FY 00 $200,000; FY 01 $199,996

Abstract: This project evaluates: (1) changes in the medical rehabilitation industry; (2) the need for

and access to medical rehabilitation among individuals with emerging disabilities; and (3) the potential impact of these changes on the rehabilitation of individuals with emerging disabilities. The

project demonstrates empirically how structural changes in the post-acute health care market and the

emergence of previously unrecognized disabilities intersect, and outlines new challenges to health

care policy and service delivery. Emerging disabilities occur from changes in the social, economic,

and physical environment, such as social inequalities (e.g., violence-induced neurological trauma;

diabetes); changes in workplace technologies (e.g., repetitive motion syndromes); environmental

factors (e.g., child and adult asthma); and medical conditions with increasing prevalence (e.g., HIV/

AIDS; diabetes). The evaluation process is conducted through critical literature reviews, secondary

data analyses, and qualitative interviews with different stakeholder groups (including rehabilitation

and acute care providers, health plans, purchasers, consumers, and consumer advocacy groups). The

resulting synthesis illuminates the divergence/convergence of changes in the medical rehabilitation

industry and the unfolding needs of emerging disability populations, and informs health care policy

and health care delivery systems on how these new demands on post-acute care can be met adequately.
2-16 Health and Function

Disability and Rehabilitation Research Projects

Florida

Pharmacological Management of Dyslipidemia and Cardiovascular

Disease in Persons with Chronic Cervical SCI: A Multicenter

Collaborative Trial

University of Miami

School of Medicine

1095 Northwest 14th Terrace

Miami, FL 33136

http://www.miamiproject.miami.edu

Principal Investigator: Mark S. Nash, PhD, 305/284-4535

Public Contact: Maria Amadore, Directory of Education, Miami Project to Cure Paralysis, 305/

243-7108

Project Number: H133A011115

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $344,023

Abstract: This project researches strategies that reduce cardiovascular disease risks after onset of

tetraplegia by increasing high-density lipoprotein cholesterol (HDL-C) levels. The research examines the ability of a pharmaceutical therapy to improve the lipid profiles and forestall cardiovascular

disease progression in persons with tetraplegia. Previous research on persons without SCI has shown

extended-release niacin effective for elevating HDL-C, lowering total cholesterol, lowering lowdensity lipoprotein cholesterol (LDL-C), lowering triglycerides, slowing cardiovascular disease

progression, and reducing cardiovascular morbidity and mortality. The ability of this drug to improve lipid profiles has never been examined in persons with tetraplegia, although drug benefits

similar to those reported in persons without SCI would be of great health benefit to those with

tetraplegia.
Health and Function 2-17

Disability and Rehabilitation Research Projects

Massachusetts

Access to Health Care Services for Persons with Disabilities: Defining

the Barriers and Strategies for Change

Health and Disability Working Group

Boston University

School of Public Health

374 Congress Street, Suite 502

Boston, MA 02210

drainoni@bu.edu

http://www.hdwg.org

Principal Investigator: Mari-Lynn Drainoni, PhD

Public Contact: 617/426-4447; Fax: 617/426-4547

Project Number: H133A990014

Start Date: October 1, 1999

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $245,434; FY 00 $245,434; FY 01 $246,676

Abstract: This project examines a wide range of access barriers to the continuum of health care

services for people with disabilities across the life span in Massachusetts. Project objectives include:

(1) to examine variation in access to health care services by provider type; (2) to examine different

types of access important for people with disabilities: physical access, communication access,

cognitive access, and medical access; (3) to identify changes made since the passage of the ADA;

(4) to identify barriers to health care services as experienced by individuals with disabilities and

compare this experience with provider perceptions; (5) to identify best practices that mitigate access

barriers; (6) to develop a research agenda for future activities in this area; and (7) to develop dissemination products that advance both knowledge and practice among purchasers, regulators, health

plans, providers, and people with disabilities. The project examines the accessibility of a range of

health care providers, including outpatient clinics, hospital outpatient departments, mental health

and substance abuse treatment providers, dentists’ offices, hospitals, rehabilitation facilities, acute

detoxification facilities, and assisted living facilities.
2-18 Health and Function

Disability and Rehabilitation Research Projects

Mississippi

Collaborative Study of Impaired Self-Awareness After Traumatic

Brain Injury

Methodist Rehabilitation Center

Brain Injury Program

1350 East Woodrow Wilson Center

Jackson, MS 39216

marks@mmrcrehab.org

http://www.mmrcrehab.org

Principal Investigator: Mark Sherer, PhD

Public Contact: 601/364-3448; Fax: 601/364-3452

Project Number: H133A980067

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 98 $140,108; FY 99 $140,108; FY 00 $140,108; FY 01 $140,108

Abstract: This project creates new knowledge on impaired self-awareness (ISA) in people with

moderate to severe TBI. ISA interferes with effective delivery of rehabilitation services, prevents

self-advocacy, leads to distress within the family system, and negatively affects social outcomes.

This project studies its impacts and its subjective meaning for consumers in order to design new

treatments and service delivery innovations. It conducts the first large-scale (N=160), prospective

longitudinal study of ISA’s neural substrates, neuropsychological features, natural history, and

relationship to functional and quality-of-life outcomes over the first year following moderate-tosevere TBI. With several methodological innovations that improve interpretation of the quantitative

data, project researchers provide the first systematic qualitative study of self-awareness from the

perspective of people with TBI and their families. The project uses: (1) the expertise of researchers

involved in TBI outcomes research, (2) many data elements already captured in the Model System

database and supported by Model System infrastructure, and (3) the high volume of subjects and

excellence of resources jointly available at the two collaborating sites. The project is a collaboration

between the TBI Model System of Mississippi and the TBI Model System at MossRehab in Philadelphia. Findings are disseminated to consumers, rehabilitation professionals, and the TBI Model

Systems nationwide.
Health and Function 2-19

Disability and Rehabilitation Research Projects

Ohio

A Double-Blind, Placebo-Controlled Trial Exploring the Efficacy of

Nortriptyline and Amantadine in the Management of Post-Traumatic

Agitation

Ohio State University

Department of Physical Medicine and Rehabilitation

Dodd Hall

480 West Ninth Street

Columbus, OH 43210

mysiw.1@osu.edu

Principal Investigator: W. Jerry Mysiw, MD

Public Contact: 614/293-3801; Fax: 614/293-3809

Project Number: H133A980056

Start Date: November 1, 1998

Length: 48 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $269,000; FY 99 $265,435; FY 00 $273,845; FY 01 $295,901

Abstract: This study provides objective data for evidence-based evaluation and treatment of the

most common behavioral impediment to acute rehabilitation, posttraumatic agitation. Posttraumatic

agitation is a dramatic behavioral consequence of TBI occurring in approximately 33 percent of

coma-emerging patients. The agitated brain injury survivor has diminished capacity to tolerate or

respond to traditional rehabilitation services. At risk for injury and disruptive to the therapeutic

milieu, these patients consume considerable health care resources. Pharmacologic intervention is

becoming increasingly important in the care of posttraumatic agitation in an effort to resolve the

aberrant behavior promptly and permit the patient to respond to an expanded range of rehabilitation

services. This project offers a unique opportunity to develop the multicenter trial needed to recruit a

statistically meaningful cohort for study. The project involves a randomized, double-blind, placebocontrolled study of two medications commonly used to treat agitation. The study has specifically

chosen measures of treatment efficacy with demonstrated validity in this population. The study is

done in collaboration with more than four NIDRR-funded Model TBI Systems.
2-20 Health and Function

Disability and Rehabilitation Research Projects

Pennsylvania

Treatment of Shoulder Dysfunction in Polio Survivors and Elderly

Adults with Lower Extremity Impairment

MossRehab

Albert Einstein Healthcare Network

1200 West Tabor Avenue, Korman Suite 213

Philadelphia, PA 19141-3099

mklein@einstein.edu

Principal Investigator: Mary G. Klein, PhD

Public Contact: 215/456-7864; Fax: 215/456-5926

Project Number: H133A000101

Start Date: July 1, 2000

Length: 24 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $233,074; FY 01 $229,424

Abstract: This project demonstrates how a well-structured exercise program can help to alleviate

shoulder symptoms in polio survivors. Research is needed to determine the effectiveness of treatment modalities, such as exercise, on shoulder overuse disorders in polio survivors and other populations with lower extremity impairments. Previous research has determined that shoulder pain is

one of the most frequent overuse symptoms seen among post-polio survivors. Additionally, elderly

adults who have lower extremity impairments, but no history of polio, also develop overuse symptoms. This research uses a predictive model of shoulder pain that demonstrated that lower extremity

weakness and weight were associated with the presence of shoulder overuse symptoms, thus suggesting that these symptoms may arise from use of the upper extremities to compensate for lower

extremity weakness during transfers, stair climbing, and other activities. Exercise training is a

potential means of reducing the burden of both primary and secondary impairments in post-polio

and elderly populations with significant lower extremity weakness, and an effective treatment for

improving function and quality of life. Other populations with lower extremity weakness who may

benefit from this research include those with muscular sclerosis or incomplete spinal cord injuries.
Health and Function 2-21

Disability and Rehabilitation Research Projects

Pennsylvania

Collaboration of Upper Limb Pain in Spinal Cord Injury

University of Pittsburgh

7180 Highland Drive

Pittsburgh, PA 15206

cooperrm@pitt.edu

Principal Investigator: Michael L. Boninger, MD

Public Contact: Peter Hunt, 412/365-4850; Fax: 412/365-4858

Project Number: H133A011107

Start Date: December 1, 2001

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $349,998

Abstract: This collaborative studies project provides an opportunity to gain further insight into the

cause and prevention of upper limb repetitive strain injuries in SCI. For the approximately 200,000

individuals with SCI, upper limb pain and injury is very common; some studies find prevalence

rates above 70 percent. Prolonged wheelchair use and transfers have long been thought to cause

these repetitive strain injuries. The consequences of upper limb pain are so significant that some

researchers have suggested that damage to the upper arm may be functionally and economically

equivalent to a spinal cord injury of higher neurological level. This collaboration includes the

University of Pittsburgh Medical Center Spinal Cord Injury project, the Northern New Jersey Spinal

Cord Injury System (NNJSCIS), and the Northwest Regional Spinal Cord Injury System

(NWRSCIS).
2-22 Health and Function

Disability and Rehabilitation Research Projects

Texas

Impact of Family Environment on Patient and Family Outcome After

TBI: A Multicenter Study

Baylor College of Medicine

Brain Injury Research Center

2455 South Braeswood

Houston, TX 77030

sandea@tirr.tmc.edu

http://www.braininjuryresearch.org

Principal Investigator: Angelle M. Sander, PhD

Public Contact: 713/666-9550; Fax: 713/383-5695

Project Number: H133A980058

Start Date: November 1, 1998

Length: 48 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $224,989; FY 99 $210,239; FY 00 $210,239; FY 01 $210,239

Abstract: This study determines the importance of the pre-injury family environment in the prediction of long-term patient and family outcome after TBI. The research develops models that can be

used to identify family members and patients who are at risk for developing long-term adjustment

problems. Information gained is also used to develop and pilot a structured family intervention.

Previous research has shown that TBI results in substantial distress for a majority of family members. Research conducted with parents of children with TBI indicates that pre-injury family functioning has an impact on children’s outcome. Similar studies have not been conducted with the

population of adults with TBI. In this project data is collected at three Model System Centers: The

Institute for Rehabilitation and Research (TIRR), Mississippi Methodist Rehabilitation Center

(MMRC), and the Mayo Medical Center (MAYO); data collection is integrated with the current

Model Systems Research Protocol. Systematic dissemination activities are designed to target consumers (people with TBI and their families) and rehabilitation professionals.
Health and Function 2-23

Disability and Rehabilitation Research Projects

Texas

Effects of Methylphenidate on Working Memory and Cerebral

Glucose Metabolism in Persons with Severe Traumatic Brain Injury

Baylor College of Medicine

Cognitive Neuroscience Laboratory

6560 Fannin Street, Box 67, Suite 1144

Houston, TX 77030

hlevin@bcm.tmc.edu

Principal Investigator: Harvey S. Levin, PhD

Public Contact: Angela D. Williams, MBA, JD, 713/798-4860; Fax: 713/798-6898

Project Number: H133A980073

Start Date: December 1, 1998

Length: 48 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $279,903; FY 99 $274,319; FY 00 $275,255; FY 01 $277,340

Abstract: This project conducts a multicenter clinical trial of methylphenidate (MPH) to treat

deficits in working memory and other cognitive impairments resulting from severe TBI. MPH is a

potentially cost-effective intervention that could mitigate frequent and disabling cognitive impairments and thereby improve the lives of people with TBI, their families, and caregivers. By using

functional brain imaging to identify the mechanism through which MPH improves cognitive functioning, the project seeks direction for developing pharmacologic interventions for people with TBI.

A total of 144 people with severe TBI are recruited at three TBI Model Systems Centers (including

The Institute for Rehabilitation and Research, Houston, Texas, and the Department of Rehabilitative

Medicine, University of Washington, Seattle, Washington). All have a working memory deficit on

one or both screening tests and no medical contraindications for MPH treatment. Working memory,

long-term memory, processing speed, everyday memory, and productivity in performing adaptive

activities are assessed at pretreatment baseline. Subsets of participants also undergo functional

magnetic resonance imaging to evaluate changes in patterns of brain activation. Results are disseminated through publications, presentations, and Internet media to NIDRR Model Systems network

investigators, other researchers, rehabilitation providers, family members, and payers.
2-24 Health and Function

Model Burn Injury Systems Model Burn Injury Systems

Colorado

Model System for Burn Injury Rehabilitation

University of Colorado Health Sciences Center

School of Medicine

Department of Preventive Medicine and Biometrics

4200 East Ninth Avenue, Box B119

Denver, CO 80262

rebecca.sloan@uchsc.edu

http://mama.uchsc.edu/pub/nidrr

Principal Investigator: Dennis C. Lezotte, PhD, 303/315-6873

Public Contact: Rebecca Sloan, Database Administrator, 303/315-0320; Fax: 303/315-3183

Project Number: H133A980055

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $125,000; FY 99 $125,000; FY 00 $125,000; FY 01 $125,000

Abstract: The Burn Model System/Data Coordinating Center (BMS/DCC) works for and regularly

communicates with all clinical BMS principal investigators and their staff to provide the necessary

technical, data management, research, and data analysis support for evaluating burn care and rehabilitation outcomes. The DCC and all sites periodically assess specific data elements and operational

definitions to become part of a common data dictionary that supports broad-based health services

and resource utilization research. The activities of the DCC include developing strategies for establishing and deploying methods to: (1) ensure standard data collection over time; (2) retrieve and

integrate each clinical center’s common dataset into a combined database; (3) perform essential

quality control checks and distribute site-specific error reports; (4) compile and distribute annual

program summaries; (5) perform and monitor statistical analyses required of the combined database;

(6) assist in the design and support of special ad-hoc research projects; and (7) assist in the dissemination of summary and scientific reports addressing the utility and effectiveness of Burn Model

System clinical and rehabilitation strategies.
Health and Function 2-25

Model Burn Injury Systems

Maryland

Johns Hopkins University Burn Injury Rehabilitation Model System

(JHU-BIRMS)

Baltimore Regional Burn Center

Johns Hopkins Bayview Medical Center

4940 Eastern Avenue

Baltimore, MD 21224

jfauerba@jhmi.edu; delateur@jhmi.edu

http://www.jhbmc.jhu.edu/brbc/birms

Principal Investigator: James A. Fauerbach, PhD; Barbara J. deLateur, PhD, 410/550-0894

(Fauerbach); 410/532-4717 (deLateur)

Public Contact: Bernadette Guthrie, 410/550-5298; Fax: 410/550-7942; 410/532-4719 (deLateur)

Project Number: H133A70025

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $294,375; FY 98 $294,375; FY 99 $294,375; FY 00 $294,375; FY 01

$294,375

Abstract: This model system conducts and evaluates systematized protocols for the care of pediatric

and adult patients with severe burn injuries through a comprehensive and integrated program of

research. The program validates and develops normative data for several measures related to physical, psychosocial, and vocational outcomes, including a self-selected walking speed task, a hand

function test, adjustment to disfigurement, and generic and burn-specific quality-of-life tests. Additionally, the project is evaluating innovative methods of reducing functional impairment due to

secondary complications such as cross-joint contractures; deconditioning; posttrauma distress;

disfigurement-related distress; and enhancing vocational quality-of-life and educational outcomes,

including a VR intervention and a school-based rehabilitation intervention. Experts provide training

to generalist health care professionals serving burn survivors in remote and rural regions. The

program conducts collaborative studies with the University of Washington Model System and the

New York Hospital Center/Cornell University. This project contributes to the national statistics

database at the University of Colorado Health Sciences Center.
2-26 Health and Function

Model Burn Injury Systems

Texas

Model System for Burn Injury Rehabilitation

University of Texas/Dallas

Southwestern Medical Center

Physical Medicine and Rehabilitation Department

5323 Hines Boulevard

Dallas, TX 75390-9136

radha.holavanahalli@utsouthwestern.edu

http://www.swmed.edu/ntbrms/welcome.htm

Principal Investigator: Phala Helm, MD, 214/648-2288

Public Contact: Radha Holavanahalli, PhD, 214/648-9540; 214/648-3654; Fax: 214/648-2005

Project Number: H133A70023

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $295,000; FY 98 $295,000; FY 99 $295,000; FY 00 $295,000; FY 01

$295,000

Abstract: The North Texas Burn Rehabilitation Model System (NTBRMS), a multidisciplinary,

comprehensive, and coordinated burn injury rehabilitation system, addresses emergency, medical/

surgical, rehabilitation, psychosocial, and vocational activities. Three quarterly clinics have been

established in the rural areas of Tyler, Waco, and Fort Worth Texas. Two studies address prevention

of secondary complications, one comparing the use of sustained stretching with and without paraffin, and the other comparing serial splinting with serial casting. Two collaborative research projects

develop and evaluate functional outcome measures, one developing and validating a new physical

functional outcome tool, and the other assessing the SF-36 as an outcome measure. Interventions are

evaluated by addressing several research questions. Children are evaluated by addressing outcomes

that may vary as a function of the services they received or the compliance of their families with

treatment. This project contributes to the National Data Center at the University of Colorado Health

Sciences Center, including new outcome variables for children. The NTBRMS provides patient and

family education and dissemination by conducting seminars and presenting and publishing results.
Health and Function 2-27

Model Burn Injury Systems

Texas

Pediatric Burn Injury Rehabilitation Model System

University of Texas Medical Branch

815 Market Street, Route 1220

Galveston, TX 77550

dherndon@utmb.edu

Principal Investigator: David Herndon, MD, 409/770-6731

Public Contact: Pat Blakeney, PhD, 409/770-6718; Fax: 409/770-6919

Project Number: H133A70019

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $295,000; FY 98 $295,000; FY 99 $295,000; FY 00 $295,000; FY 01

$295,000

Abstract: This project focuses on the recovery and rehabilitation of severely burned children. The

project develops and analyzes a longitudinal database that includes measures of cardiopulmonary

function, physical growth and maturation, bone density, range of motion, activities of daily living,

scar formation, reconstructive needs, and psychosocial adjustment. These data are contributed to the

national statistics database at the University of Colorado Health Sciences Center and are maintained

for local data analyses. Additionally, the project institutes and evaluates two modifications to current

rehabilitation regarding children with large severe burn injuries. First, an intensive inpatient rehabilitation program includes rigorous active resistance exercise training and daily care directed by the

complete medical and psychosocial rehabilitation team; and second, long-term anabolic agents (e.g.

growth hormone) are administered. Effectiveness is assessed by comparison with functional outcomes achieved in traditional home-based programs. Results indicate significant improvement in

growth, strength, endurance, bone density, and overall well-being with these rehabilitation modifications. The project also assesses current use of pressure to subdue effects of scar formation. The

project’s Community Resources Training Program operates in conjunction with selected existing

outreach clinics and school reintegration programs.
2-28 Health and Function

Model Burn Injury Systems

Washington

University of Washington Burn Injury Rehabilitation Model System

University of Washington

Harborview Medical Center

325 Ninth Avenue

Box 359796

Seattle, WA 98104

palacpac@u.washington.edu

http://faculty.washington.edu/engrav/index.html

Principal Investigator: Loren H. Engrav, MD, 206/731-3209

Public Contact: Dolores Palacpac, 206/731-2866; Fax: 206/731-3656

Project Number: H133A70014

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $295,000; FY 98 $295,000; FY 99 $295,000; FY 00 $295,000; FY 01

$295,000

Abstract: This model system: (1) identifies and evaluates techniques to prevent secondary complications; (2) develops and evaluates programs that improve follow-up services for rural populations;

(3) develops and evaluates measures of functional outcome for burn rehabilitation; and (4) identifies

and evaluates interventions, including VR and special education interventions, to improve psychosocial adjustment, quality of life, community reintegration, education, and employment-related outcomes. This project contributes to the national statistics database at the University of Colorado

Health Sciences Center.
Health and Function 2-29

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Alabama

UAB Model Spinal Cord Injury Care System

University of Alabama/Birmingham

Spain Rehabilitation Center

619-19th Street South SRC 529

Birmingham, AL 35249-7330

lindsey@uab.edu

http://main.uab.edu/show.asp?durki=10712

Principal Investigator: Amie B. Jackson, MD, 205/934-3330

Public Contact: Linda Lindsey, Assistant Director Research Services, 205/934-3283 (V); 205/934-

4642 (TTY); Fax: 205/975-4691

Project Number: H133N000016

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $340,000; FY 01 $340,000

Abstract: The purpose of the University of Alabama at Birmingham (UAB) Spinal Cord Injury

Care System (UAB-SCICS) program is to provide cutting edge, cost effective, comprehensive care

from the moment of injury across the life span for persons who incur a SCI; to investigate ways of

improving aspects of that system of care through clinical research; and to disseminate project research findings to persons with SCI, their family members, and professional care providers. UABSCICS includes two research projects: (1) investigating musculoskeletal/spine changes in postmenopausal women with SCI; and (2) completing a longitudinal investigation of the processes

involved in coming to terms with disability over the first year post-injury. UAB-SCICS maintains

linkages with emergency medical service agencies throughout the state, with state and local VR and

long-term follow-up programs, with clinically oriented research activities within the UAB-SCICS

itself; with UAB’s companion Medical RRTC on Secondary Conditions of SCI, as well as with

clinical research programs being conducted at other Model SCI Systems. The UAB-SCICS currently

maintains the National Spinal Cord Injury Statistical Center.
2-30 Health and Function

Model Spinal Cord Injury Systems

California

Regional Spinal Cord Injury Care System of Southern California

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, HB117

Downey, CA 90242-4155

rwaters@dhs.co.la.ca.us

Principal Investigator: Robert L. Waters, MD, 562/401-7048

Public Contact: 562/401-7161; Fax: 562/803-5623

Project Number: H133N000029

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $345,000; FY 01 $345,000

Abstract: The Regional Spinal Cord Injury Care System of Southern California’s primary mission

is to collect initial and follow-up data on persons who have sustained spinal cord injuries and submit

it to the national statistics database at the University of Alabama at Birmingham. Another component of the project focuses on literacy in individuals with SCI. Also, the project identifies, evaluates,

and eliminates environmental barriers, particularly cultural and social barriers, to enable people with

SCI to reintegrate fully into their community, and thus improve their lives. The project has been

designed to meet the needs of the approximately 75 percent minority and underserved populations

that comprise its clientele, and has samples sufficient for achieving adequate statistical power in the

relevant designs and producing meaningful research. Finally, the System contributes new and useful

information to the current collection of SCI literature. This project contributes to the national statistics database at the University of Alabama at Birmingham.
Health and Function 2-31

Model Spinal Cord Injury Systems

California

Model Spinal Cord Injury System

Santa Clara Valley Medical Center (SCVMC)

Medical Staff Corporation

950 South Bascom Avenue, Suite 2011

San Jose, CA 95128

tbisci@tbi-sci.org

http://www.tbi-sci.org

Principal Investigator: Tamara Bushnik, PhD, 408/295-9896

Public Contact: Fax: 408/295-9913

Project Number: H133N000007

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $340,000; FY 01 $340,000

Abstract: The system of care at the Santa Clara Valley Medical Center (SCVMC) that extends from

the scene of the accident to community reintegration has been developed through a program encompassing services, teaching and demonstration, and clinical research activities in its northern and

central California and Nevada catchment area. This effort continues to include community agency

staff and consumers and has produced a network of services addressing the needs of individuals with

SCI. Based on input from consumers and their family members, community organizations, rehabilitation health professionals, and the rehabilitation literature, the research program studies: (1) the

efficacy of peer support, both group and one-on-one mentoring, to improve quality of life, physical

and psychosocial status, and community participation and integration; (2) if a regular exercise

program can improve the above mentioned community outcomes; (3) the effect of high personal

attendant turnover on the above mentioned variables and whether an intervention can decrease that

turnover and improve outcomes; and (4) the provision of SCI-specific education and whether improving knowledge improves outcomes. This project contributes to the national statistics database at

the University of Alabama at Birmingham.
2-32 Health and Function

Model Spinal Cord Injury Systems

Colorado

The Rocky Mountain Regional Spinal Injury System

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80110-2811

susie@craighospital.org

http://www.craighospital.org

Principal Investigator: Daniel P. Lammertse, MD, 303/789-8220

Public Contact: Scott Manley, EdD, 303/789-8214 (V); 303/789-8575 (TTY); Fax: 303/789-8219

Project Number: H133N000001

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $375,000; FY 01 $375,000

Abstract: The Rocky Mountain Regional Spinal Injury System (RMRSIS) emphasizes research and

significant contributions that have been made in the areas of SCI costs of care, aging, outcome

assessment, high tetraplegia, neurorehabilitative surgery, and program evaluation, as well as participation in randomized controlled multicenter clinical trials. An integrated research agenda includes a

controlled clinical trial of therapy for shoulder pain and evaluations of longitudinal outcomes of

surgery for spinal cord myelopathies, recovery from pressure sore surgery, perimenopausal symptoms and treatments in women with SCI, the issues of women who provide assistance to a partner

with SCI, and the impact of environmental barriers on the full participation in of people with SCI.

The project includes two highly regarded Level I and Level II trauma centers with specialized acute

neurotrauma care facilities (St. Anthony Hospital and Swedish Medical Center) and the rehabilitation and lifetime follow-up services of Craig Hospital. These facilities bring together a full complement of disciplines and specialists, medically directed by six full-time physicians specializing in SCI

acute and rehabilitation management, to provide all components of a Model System of care. This

project contributes to the national statistics database at the University of Alabama at Birmingham.
Health and Function 2-33

Model Spinal Cord Injury Systems

Florida

South Florida Regional Spinal Cord Injury Model System

University of Miami

School of Medicine

P.O. Box 016960, R-48

Miami, FL 33101-9844

msipski@miamiproject.med.miami.edu

http://www.miamiproject.miami.edu

Principal Investigator: Marca L. Sipski, MD, 305/324-3174

Public Contact: Fax: 305/243-3395

Project Number: H133N000017

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $375,000; FY 01 $320,000

Abstract: The South Florida Spinal Cord Injury System (SFSCIS) is a cooperative effort between

the University of Miami School of Medicine, The Miami Project to Cure Paralysis, Jackson Memorial Hospital, and the Miami VA Medical Center. The SFSCIS is a multidisciplinary system of care

providing comprehensive rehabilitation services specifically designed to meet the special needs of

individuals with spinal cord injuries. The clinical components of the SFSCIS include emergency

medical services, acute care, vocational and other rehabilitation services, community and job placement, and long-term community follow-up and health maintenance. A comprehensive prevention

program is included in the program. A significant and substantial research program focuses on the

maintenance of health and function; three clinical trials and five major research projects are included. Each of these projects centers on studying interventions to improve outcomes in the preservation or restoration of function following SCI. In addition to these research projects, this project

contributes to the National Spinal Cord Injury Database. A program designed for widespread dissemination of research and demonstration findings is included. In addition, culturally appropriate

methods of education, training, and outreach are interwoven throughout the projects. Finally, the

program includes a comprehensive evaluation program.
2-34 Health and Function

Model Spinal Cord Injury Systems

Georgia

Georgia Regional Spinal Cord Injury Care System

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road Northwest

Atlanta, GA 30309-1465

lesley_hudson@shepherd.org

http://www.shepherd.org

Principal Investigator: David F. Apple, Jr., MD, 404/350-7353

Public Contact: Lesley M. Hudson, MA, Project Co-Director, 404/350-7591; Fax: 404/355-1826

Project Number: H133N000005

Start Date: September 30, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $374,992; FY 01 $374,992

Abstract: The Georgia Regional Spinal Cord Injury Care System admits approximately 200 individuals annually with acute onset paralysis secondary to spinal cord injury, and collects post-discharge data on 600 individuals each year. Its patient population comes primarily from Georgia, the

rest of the Southeast, and the Eastern Seaboard. The continuum of care begins at injury and continues through transport, assessment, acute care, rehabilitation, emotional adjustment, community

reintegration, and lifetime follow-up. The program is involved with site-specific research projects on

incomplete spinal cord injuries, enhanced long distance technological communications with patients,

and the determination of early predictors of secondary complications. As part of the clinical research

activity sponsored by the facility’s Crawford Research Institute, the program is responsible for

ongoing referrals of acutely injured individuals, as well as long-term follow-up and data collection.

This project contributes to the national Model Spinal Cord Injury System (SCIS) national database

at the University of Alabama at Birmingham.
Health and Function 2-35

Model Spinal Cord Injury Systems

Massachusetts

The New England Regional Spinal Cord Injury Center

Boston University Medical Center Hospital

Department of Rehabilitation Medicine

One Boston Medical Center Plaza, F-511

Boston, MA 02118-2393

shanker.nesathurai@bmc.org

http://www.bumc.bu.edu/Departments/HomeMain.asp?DepartmentID=91

Principal Investigator: Shanker Nesthurai, MD

Public Contact: Tricia Regan, Administrative Director of Rehabilitation Services, 617/638-7310;

Fax: 617/638-7313

Project Number: H133N000024

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $374,514; FY 01 $300,000

Abstract: The principal goals of the New England Regional Spinal Cord Injury Center (NERSCIC)

are to identify interventions with a high likelihood of promoting employment and reemployment and

to evaluate, systematically and scientifically, the efficacy of these strategies. The outcome is a

regional clinical and research capacity designed to meet the needs of people with SCI, their employers and prospective employers, and the needs of people who provide their care. The Model SCI

System includes ten research projects: (1) a pilot study on the effects of Internet access upon the

health and social interactions of people with SCI; (2) a study of building accessibility in eastern

Massachusetts; (3) a study of “way-finding” as confronting environment barriers and facilities; (4) a

return to work of twenty people with SCI; (5) a study of freehand; (6) secondary data analysis of the

inter-relationship among catheterization, smoking, and bladder cancer; (7) an insurance study identifying incentives and disincentives to work; (8) a study of the effects of health and fitness on secondary conditions to initiating or continuing paid employment; (9) the child care and dependent care

needs of adults with disabilities and the effects of employment upon their children and other dependents; and (10) a secondary analysis of Veterans with SCI. This project contributes to the national

statistics database at the University of Alabama at Birmingham.
2-36 Health and Function

Model Spinal Cord Injury Systems

Michigan

University of Michigan Model Spinal Cord Injury Care System

University of Michigan

Department of Physical Medicine and Rehabilitation

300 North Ingalls, Room NI2A09

Ann Arbor, MI 48109-0491

model.sci@umich.edu

http://www.med.umich.edu/pmr/model_sci

Principal Investigator: Denise G. Tate, PhD, ABPP, 734/936-7052

Public Contact: Martin Forchheimer, 734/763-0971; Fax: 734/936-5492

Project Number: H133N000009

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $373,000; FY 01 $320,000

Abstract: The University of Michigan Model Spinal Cord Injury Care System provides comprehensive care and services to both children and adults, and is the only facility in Michigan to care for

ventilator-dependent persons of all ages with SCI. The project objectives are to: (1) provide a continuum of comprehensive, multidisciplinary services for persons with SCI, from emergency medical

services to long-term community follow-up, with a focus upon maintaining health; (2) demonstrate

the effects of the continuum of comprehensive services, focusing on its efficacy in promoting employment, health maintenance and wellness, independent living, and community reintegration; (3)

conduct significant research, using a participatory action research approach involving consumer

input from inception through implementation; (4) operate an efficient service system; and (5) develop and demonstrate methods of community outreach and education in collaboration with the Ann

Arbor Center for Independent Living (AACIL) to reach professionals, consumers, and their families

in other rehabilitation facilities and Centers for Independent Living (CILs) in Michigan. These

objectives emphasize community reintegration as a key outcome. The Model System is in collaboration with the AACIL, with the goal of promoting community reintegration. This partnership ensures

a coordinated approach to clinical care, training, and research that integrates consumer empowerment with comprehensive lifelong follow-up, bringing a consumer-professional synergy to the

project that serves as an example for other Model SCI Systems. This project contributes to the

national statistics database at the University of Alabama at Birmingham.
Health and Function 2-37

Model Spinal Cord Injury Systems

Missouri

Missouri Model Spinal Cord Injury System

University of Missouri/Columbia

Department of Physical Medicine and Rehabilitation

One Hospital Drive, DC046.00

Columbia, MO 65212

nossamanl@health.missouri.edu

http://www.hsc.missouri.edu/~momscis

Principal Investigator: Kristofer Hagglund, PhD, 573/882-8847

Public Contact: Larry Nossaman, 573/884-2899 (V); 573/882-7971 (TTY); Fax: 573/884-2902

Project Number: H133N000012

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $300,000; FY 01 $300,000

Abstract: The Missouri Model Spinal Cord Injury System (MOMSCIS) is committed to developing, implementing, and evaluating innovative research that promotes independent living and community integration among persons with spinal cord dysfunction. The two studies focus on the effect

of a consumer-directed personal assistance services training intervention on consumer satisfaction,

independent living, and community integration. The purpose of Study 1 is to develop, implement,

and evaluate the in-person Individualized Management of Personal Assistant/Consumer Teams

(IMPACT) workshop. The purpose of Study 2 is to assess whether this workshop can be implemented as effectively via video teleconferencing as in person, thereby increasing dramatically its

dissemination potential. The objectives of the studies are: (1) to determine the effect of the IMPACT

workshop on consumer satisfaction, the incidence of secondary conditions, activity, and participation (as defined by the ICIDH-2); (2) to determine the effect of the IMPACT workshop on personal

assistant’s job satisfaction, job stress, and attrition; (3) to test for differences in outcomes between

the participants who attended the workshop in-person and those who attend the workshop via video

teleconferencing; and (4) to develop, evaluate, and refine a Web version of the interactive IMPACT

workshop. Data from this research provides valuable information for future studies seeking to

document changes in personal independence and community integration. This project contributes to

the national statistics database at the University of Alabama at Birmingham.
2-38 Health and Function

Model Spinal Cord Injury Systems

New Jersey

Northern New Jersey Spinal Cord Injury System

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052-1499

dtulsky@kmrrec.org

http://www.kmrrec.org/NNJSCIS/index.html

Principal Investigator: Joel A. DeLisa, MD, 973/243-6805

Public Contact: David Tulsky, PhD, Co-Investigator; Steven Kirshblum, Co-Investigator, 973/243-

6849; 973/243-6916; Fax: 973/243-6861

Project Number: H133N000022

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $345,000; FY 01 $344,724

Abstract: The Northern New Jersey Spinal Cord Injury System (NNJSCIS) attempts to improve

outcomes for persons with SCI through novel interventions and expanded service delivery options.

The NNJSCIS is composed of Kessler Medical Rehabilitation Research and Education Corporation,

Kessler Institute for Rehabilitation, and University of Medicine and Dentistry of New Jersey-University Hospital. The NNJSCIS has an interdisciplinary system of rehabilitation care specifically

designed to meet the needs of individuals with SCI. It includes emergency medical services; acute

care; psychological, social, and vocational services; peer support; independent living services;

community and job placement, long-term community follow-up; and health maintenance. Some of

the research and demonstration projects target three of the most common secondary conditions

(pressure ulcers, shoulder pain, and urinary tract infections). Other studies promote wellness by

reducing obesity, examine the relation between health literacy and outcomes, and identify risk

factors and prevent potential problems. One project operationalizes the newly developed Clinical

Practice Guidelines. The NNJSCIS contributes to the National Statistics Data Center.
Health and Function 2-39

Model Spinal Cord Injury Systems

New York

Mount Sinai Spinal Cord Injury Model System

Mount Sinai School of Medicine

Department of Physical Medicine and Rehabilitation

One Gustave L. Levy Place

Box 1240

New York, NY 10029-6574

marcel.dijkers@mssm.edu

http://www.mssm.edu/rehab/spinal

Principal Investigator: Kristian T. Ragnarsson, MD

Public Contact: Marcel Dijkers, PhD, 212/659-9340; Fax: 212/348-5901

Project Number: H133N000027

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $320,000; FY 01 $320,000

Abstract: The Mount Sinai Spinal Cord Injury Model System (MS-SCI-MS) of the Department of

Rehabilitation Medicine of Sinai Hospital (MSH) and the Mount Sinai School of Medicine (MSSM)

in New York City provides comprehensive care to meet the diverse needs of persons with SCI in its

catchment area. There are four components of the system: (1) comprehensive clinical care; (2)

research (both center-specific research and contributions to the national statistics database); (3)

dissemination, education, and training; and (4) injury prevention. The comprehensive clinical program stresses interdisciplinary care, and employs a primary team model to enhance coordination

among caregivers. Comprehensive outpatient rehabilitation services and long-term follow-up at

MSH are also included. Rehabilitation services include an evaluation program for a high-tech

wheelchair and seating system, a lower-extremity functional electrical stimulation ergometry program, psychosocial services, extensive VR services, a consumer-directed program to promote

community reintegration (DO IT!), and a women’s peer group. Specialty medical and surgical

services include a fertility program for males with ejaculatory dysfunction, intrathecal pumps for

treatment of spasticity, upper extremity reconstruction, and cutting-edge technology. A preventive

health care demonstration project for screening and early intervention of secondary medical conditions is included as a collaborative effort of the MS-SCI-MS and the Spinal Cord Damage Research

Center at the Bronx Veterans Affairs Medical Center. The research program of MS-SCI-MS consists

of two studies relevant to one of the most disabling secondary conditions of SCI, chronic pain: (1)

meta-analyses of pain reports and pain treatments; and (2) a prospective study of pain. This project

contributes to the national statistics database at the University of Alabama at Birmingham.
2-40 Health and Function

Model Spinal Cord Injury Systems

Pennsylvania

Demonstration of a Model Spinal Cord Injury System Center

Thomas Jefferson University

Jefferson Medical College

132 South 10th Street

375 Main Building

Philadelphia, PA 19107-5244

mary.call@mail.tju.edu

http://www.jeffersonhospital.org/rehabmed

Principal Investigator: John F. Ditunno, Jr., MD, 215/955-5580

Public Contact: Mary Patrick, 215/955-6579; Fax: 215/955-5152

Project Number: H133N000023

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $370,000; FY 01 $370,000

Abstract: The Regional Spinal Cord Injury Center of Delaware Valley (RSCICDV) is a comprehensive program of coordinated patient care, education, and research activities. The RSCICDV: (1)

conducts on-site research focusing on improved outcome measures to meet Federally established

objectives; (2) refines and improves the RSCICDV’s operational services and demonstration

projects; and (3) conducts four development projects including development of a SCI Web site,

implementation of an SCI Care Path, development of a Pressure Sore Program, and employing

persons with SCI through hireAbility. The on-site research includes four experiments: (1) validation

of the Walking Index of Spinal Cord Injury (WISCI) scale in a clinical setting for severity and

hierarchical ranking; (2) validation of WISCI scale for elements of a disability measure for distance,

speed, and endurance into WISCI levels; (3) demonstration that the WISCI scale is responsive to

change in a clinical trial setting; and (4) demonstrate consumer preference for walking. The four

development projects include: (1) improved access to information via the Web site; (2) implementation of a critical pathway for more efficient heathcare delivery; (3) increased employment and

advancement of employment through hireAbility; and (4) increased monitoring of pressure sores

and strategies for prevention. This project contributes to the national statistics database at the University of Alabama at Birmingham. This project participates in the NIDRR Scholars program,

providing motivated undergraduates with internship experience in disability research.
Health and Function 2-41

Model Spinal Cord Injury Systems

Pennsylvania

University of Pittsburgh Model Center on Spinal Cord Injury

University of Pittsburgh

7180 Highland Drive, 151R-1

Pittsburgh, PA 15206

Principal Investigator: Michael L. Boninger, MD, 412/365-4861

Public Contact:

Project Number: H133N000019

Start Date: December 1, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $320,000; FY 01 $320,000

Abstract: The University of Pittsburgh Model Center on Spinal Cord Injury (UPMC-SCI) represents the efforts of dedicated consumers, clinicians, and researchers. The UPMC-SCI’s research

focus is on innovations in AT. The research projects evaluate the impact of selected innovations in

technology on service delivery and on outcomes such as function, independence, and employment.

One project is addressing a shortcoming in AT research through the use of a new dynamic outcome

measure developed by Professor David Gray. Researchers are also testing an innovative pushrimactivated, power-assisted wheelchair that has great potential to improve mobility for individuals with

tetraplegia. An additional project is investigating the impact of a new mobility device known as

IBOT, which is capable of balancing on two wheels, climbing curbs, and going over uneven terrain.

This represents the first study of the IBOT in a real world environment. In addition to this research,

the center provides a model of care for individuals with SCI. SCI care at the University of Pittsburgh

is provided in a multidisciplinary manner with a high level of communication among the constituent

services. The fully implemented system of continuity of treatment begins with the emergency

response at the scene of injury and continues with comprehensive treatment and rehabilitation from

medical/surgical- to acute-stage rehabilitation through utilization of AT services and VR.
2-42 Health and Function

Model Spinal Cord Injury Systems

Texas

Texas Model Spinal Cord Injury System

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Street

Houston, TX 77030-3408

khart@bcm.tmc.edu

http://www.bcm.tmc.edu/pm&r/sci/research/modelsystem

Principal Investigator: William H. Donovan, MD, 713/797-5912

Public Contact: Karen A. Hart, PhD, 713/797-5946 (V); 713/797-5790 (TTY); Fax: 713/797-5982

Project Number: H133N000004

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $330,000; FY 01 $330,000

Abstract: The Texas Model Spinal Cord Injury System (TMSCIS) provides services along the

entire continuum of care from emergency medical service to long-term follow-up and management

of secondary conditions. TMSCIS performs an analytic longitudinal investigation of disability

models to explore and quantify the interaction among various individual and environmental variables. TMSCIS operationalizes the Institute of Medicine model disability utilizing state-of-the-art

measurement techniques and comprehensive statistical approaches to test hypotheses about dynamic

interrelations of persons with SCI and their environment. This investigation involves following

newly injured persons with SCI for two years after injury. Measurements are taken of pre-injury life

conditions, enabling processes, as well as, personal, psychological, and physical environments. This

project contributes to the national statistics database at the University of Alabama at Birmingham. In

addition, the project develops and tests theoretically derived structural models from the national

database and other existing data sources.
Health and Function 2-43

Model Spinal Cord Injury Systems

Virginia

VCU Model Spinal Cord Injury Center

Virginia Commonwealth University

School of Medicine

Department of Physical Medicine & Rehabilitation

Box 980661

Richmond, VA 23298-0677

wmckinle@hsc.vcu.edu

http://www.pmr.vcu.edu/division/sci/index.html

Principal Investigator: William O. McKinley, MD

Public Contact: Michael Tewksbury, 804/828-0861; Fax: 804/828-5704

Project Number: H133N000015

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $310,000; FY 01 $310,000

Abstract: This project develops and implements a Model Spinal Cord Injury System at Virginia

Commonwealth University/Medical College of Virginia (VCU/MCV), with a concentrated emphasis

on employment. Researchers monitor and assess the impact of interventions, advancing technology,

and policy changes on employment following SCI. Collaborating partners include VCU/MCV’s

Rehabilitation Research and Training Center on Workplace Supports, the Virginia Department of

Rehabilitation Services, and the other SCI Model Systems delivery of care. Additionally, the project

partners with the Mid-Atlantic Paralyzed Veterans Association in several training, dissemination,

and other mutual outreach activities. Research studies involve use of the national statistics database,

a major employment policy study across 18 states, a major study with the Virginia Department of

Rehabilitation Services on employment outcomes (e.g., earning histories), and an evaluation of

technology training on employment outcomes. Involvement of SCI mentors in training new vocational mentors with SCI is also an important component of the work. This project contributes to the

national statistics database at the University of Alabama at Birmingham.
2-44 Health and Function

Model Spinal Cord Injury Systems

Washington

Northwest Regional Spinal Cord Injury System

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98105-6613

scirehab@u.washington.edu

http://depts.washington.edu/rehab/sci

Principal Investigator: Diana D. Cardenas, MD, 206/543-8171

Public Contact: Fax: 206/685-3244

Project Number: H133N000003

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $330,000; FY 01 $330,000

Abstract: The University of Washington’s Northwest Regional Spinal Cord Injury System

(NWRSCIS) serves a critical mass of patients with SCI and has all the necessary disciplines to

provide state-of-the-art medical, surgical, and rehabilitation care. NWRSCIS has four objectives: (1)

examine interventions to improve outcomes in the preservation or restoration of function or the

prevention and treatment of secondary conditions; (2) contribute to the national database; (3) maintain specialized clinical programs; and (4) develop and maintain education programs for consumers

and families, especially for those who belong to minority and disadvantaged groups. In addition, the

Center maintains an SCI Consumer Resource Manual and provides for the widespread dissemination

of research and demonstration findings. This project contributes to the national statistics database at

the University of Alabama at Birmingham.
Health and Function 2-45

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Alabama

Traumatic Brain Injury Care System

University of Alabama/Birmingham

Spain Rehabilitation Center

619 - 19th Street South, SRC529

Birmingham, AL 35249-7330

novack@sun.rehabm.uab.edu

http://www.uab.edu/tbi

Principal Investigator: Thomas Novack, PhD

Public Contact: 205/934-3454; Fax: 205/975-4691

Project Number: H133A980010

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01 $345,000

Abstract: The Traumatic Brain Injury Care System (UAB-TBICS) maintains and improves a costeffective, comprehensive service delivery system for people who incur a TBI, from the moment of

injury across the life span. The project: studies the course of recovery and outcomes following the

delivery of the coordinated system of care; investigates alternative methods of service delivery to

people with TBI, exploring emerging technologies to promote recovery; examines key predictors of

rehabilitation outcome and costs of care; and places emphasis on home- and community-based

activities as well as interventions that maximize community reintegration following TBI. The

project establishes and maintains linkages with emergency medical service agencies throughout the

state, state VR and long-term follow-up programs, clinically oriented research activities within the

UAB-TBICS itself, and other clinical research programs being conducted at Model TBI Systems

nationwide. This project contributes to the national statistics database at the Kessler Medical Rehabilitation Research and Education Corporation.
2-46 Health and Function

Model Traumatic Brain Injury Systems

California

A Comprehensive System of Care for Traumatic Brain Injury

Santa Clara Valley Medical Center (SCVMC)

Medical Staff Corporation

950 South Bascom Avenue, Suite 2011

San Jose, CA 95128

tbisci@tbi-sci.org

http://www.tbi-sci.org

Principal Investigator: Jeffrey Englander, MD, 408/885-2000

Public Contact: Tamara Bushnik, PhD, 408/295-9896, ext. 16; Fax: 408/295-9913

Project Number: H133A70018

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 97 $345,000; FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01

$345,000

Abstract: This program is a comprehensive, interdisciplinary system of care whose rehabilitation

program empowers consumers through a clinical program, community services for consumers,

several important research studies, and dissemination of information. Clinical services and research

studies include: (1) the community Vocational Task Force on vocational issues in brain injury; (2)

the Peer Support Program for families and consumers from time of injury through community

integration; (3) the Mild Brain Injury (MBI) program, which disseminates an educational brochure

to all entering the emergency department who have sustained injuries to the head and those who

have sustained an MBI (those who have residual complaints are evaluated for subtle deficits); and

(4) a quarterly community education series focusing on TBI topics requested by customers. The

project operates in collaboration with several community agencies. This project contributes to the

national statistics database at the Kessler Medical Rehabilitation Research and Education Corporation.
Health and Function 2-47

Model Traumatic Brain Injury Systems

Colorado

Rocky Mountain Regional Brain Injury System

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80110

kgerhart@craighospital.org; charrison-felix@craighospital.org

http://www.craighospital.org

Principal Investigator: Gale Whiteneck, PhD, 303/789-8204

Public Contact: Ken Gerhart; Cynthia Harrison-Felix, 303/789-8308 (Gerhart); 303/789-8565

(Harrison-Felix); Fax: 303/789-8441

Project Number: H133A980020

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01 $345,000

Abstract: The Rocky Mountain Regional Brain Injury System (RMRBIS) operates a comprehensive

system of care, conducts research, and disseminates the results. Collaborating programs include

Swedish Medical Center and St. Anthony Hospital, two highly regarded Level I and Level II trauma

centers and acute care facilities, and community-based programs that range from Colorado’s Medicaid Waiver Program, to private vocational services, to programs for the arts and recreation, that offer

lifelong services, ongoing follow-up, and an enhanced quality of life to people with TBI and their

families. The project conducts 13 distinct yet complementary research projects to: (1) compare the

various treatment pathways occurring in Colorado; (2) evaluate the effectiveness of vocational and

other community-based services; (3) assess the potential of a pharmacological intervention for

improving memory; (4) develop and validate neuropsychological tests; (5) improve outcome predictions through the quantification of MRI results and environmental factors; (6) examine the influence

of funding alternatives; and (7) seek a better understanding of the roles of violence and substance

abuse in TBI. This project contributes to the national statistics database at the Kessler Medical

Rehabilitation Research and Education Corporation. This project participates in the NIDRR Scholars

program, providing motivated undergraduates with internship experience in disability research.
2-48 Health and Function

Model Traumatic Brain Injury Systems

Georgia

Georgia Model Brain Injury System (GAMBIS)

Emory University

Center for Rehabilitation Medicine

1441 Clifton Road Northeast, Suite 215

Atlanta, GA 30322

anthony_stringer@emory.org

Principal Investigator: Anthony Stringer, PhD

Public Contact: 404/712-5667; Fax: 404/712-5668

Project Number: H133A980028

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01 $345,000

Abstract: The Georgia Model Brain Injury System (GAMBIS) has the capacity to follow approximately 45 percent of the moderate to severe brain injury cases expected annually in metropolitan

Atlanta, and combines the academic resources of Emory University and the Crawford Research

Institute of Shepherd Center, Inc., with the clinical resources inherent in six trauma centers, two

inpatient rehabilitation programs, and multiple postacute and subacute rehabilitation pathways.

Project activities include: comparisons between the efficacy, cost-effectiveness, and cost per qualityadjusted life year for patients in home-based and facility-based subacute care; outcome comparisons

between TBI patients grouped by injury severity to determine optimal matches between patients and

service delivery methods; the impact of violence as a cause of injury on cost and outcome within all

postacute treatment pathways; studying the efficacy of telecommunications technology and a consumer-directed Clubhouse Program in supporting community and vocational reentry; and the role of

traditional (e.g., injury severity, level of insurance benefits) and novel (e.g., progesterone level,

apolipoprotein E genotype) predictors of outcome and subjective well-being following TBI. This

project contributes to the national statistics database at the Kessler Medical Rehabilitation Research

and Education Corporation.
Health and Function 2-49

Model Traumatic Brain Injury Systems

Massachusetts

Traumatic Brain Injury Model System

Spaulding Rehabilitation Hospital

125 Nashua Street

Boston, MA 02114

toneilpi@lynx.dac.neu.edu

http://spauldingrehab.org/home/ed_research/index.htm

Principal Investigator: Mel B. Glenn, MD

Public Contact: Therese O’Neil-Pirozzi, ScD, 617/573-2456; Fax: 617/573-2469

Project Number: H133A980034

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01 $345,000

Abstract: This Traumatic Brain Injury Model System provides a comprehensive spectrum of care

for people with TBI through the collaborative effort of a complex of organizations committed to

participation in a variety of research and demonstration projects. Objectives include demonstrating a

comprehensive model system of care for individuals with TBI; investigating the efficacy of alternative service delivery; identifying and evaluating interventions that can improve vocational outcomes

and community integration; developing key predictors of rehabilitation outcome, including subjective well-being; determining the relationship between cost, interventions, and outcomes; and examining the implications of violence as a cause of TBI. The six research studies of the project include:

(1) responsiveness of the Community Integration Questionnaire and the Supervision Rating Scale;

(2) attributes of dysarthric speech as a predictor of successful use of voice recognition software for

computer access; (3) efficacy of a group model for including family members in the community

integration of the patient with TBI; (4) efficacy of community skills group outpatient therapy; (5)

palmtop computer technology as a prospective memory aid for individuals with TBI living in the

community; and (6) posttraumatic apathy: analysis, pharmacologic treatments, and outcomes. This

project contributes to the national statistics database at the Kessler Medical Rehabilitation Research

and Education Corporation. This project participates in the NIDRR Scholars program, providing

motivated undergraduates with internship experience in disability research.
2-50 Health and Function

Model Traumatic Brain Injury Systems

Michigan

Southeastern Michigan Traumatic Brain Injury System

Wayne State University and Rehabilitation Institute of Michigan

Department of Physical Medicine and Rehabilitation

261 Mack Boulevard

Detroit, MI 48201

debwood@semtbis.org

http://www.tbims.org

Principal Investigator: Robin Hanks, PhD, 313/745-9736

Public Contact: Deborah Wood, 313/745-1188; Fax: 313/966-7502

Project Number: H133A70021

Start Date: January 1, 1998

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 97 $344,989 (SEMTBIS); $125,000 (TBI National Database); FY 98

$344,989 (SEMTBIS); $125,000 (TBI National Database); FY 99 $344,989 (SEMTBIS); $125,000

(TBI National Database); FY 00 $344,989 (SEMTBIS) FY 01 $344,989 (SEMTBIS)

Abstract: This project maintains and enhances an existing model system of care and conducts

collaborative and local research projects including the following: (1) a multicenter collaborative

project with existing Traumatic Brain Injury Model Systems entitled “Post-Acute Service Delivery:

Needs, Interventions, Costs and Outcomes;” (2) the local project “Evaluation of an Enhanced Community-Based Vocational Training Program Serving Economically Disadvantaged Persons with

TBI;” (3) rehabilitation outcome, addressed through a combination of multicenter collaborative

research and dissemination projects, as well as several local projects; (4) a multicenter collaborative

project, “Length of Stay in Inpatient Rehabilitation: Does It Make a Difference?;” (5) a local

project, “Managed Primary Care for Persons with Traumatic Brain Injury: Prediction of Long-Term

Medical Care Utilization and Costs;” and (6) a multicenter collaborative project led by this project:

“Implications of Violence as a Cause of TBI on Cost, Functional Outcome, and Long-Term Community Integration.” The project previously managed the TBI National Database Center and continues

to contribute to the statistical database at the Kessler Medical Rehabilitation Research and Education

Corporation. Additional goals include coordinating research and dissemination activities with other

NIDRR TBI grantees to optimize research output, minimize redundancy of effort, and engage in

collaborative dissemination.
Health and Function 2-51

Model Traumatic Brain Injury Systems

Minnesota

Model Brain Injury System

Mayo Medical Center

Rochester, MN 55905

moessner.anne@mayo.edu

http://www.mayo.edu/model-system

Principal Investigator: James F. Malec, PhD, 507/255-3116

Public Contact: Anne Moessner, 507/255-5109; Fax: 507/255-4641; 507/255-7696

Project Number: H133A980036

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01 $345,000

Abstract: This Model System enables people with TBI in the Minnesota region to participate fully

in their families, communities, school, and work. The System’s 14 studies and projects include: (1)

providing the appropriate continuum of care for the approximately 500 people with TBI admitted

yearly through the Mayo Level I Trauma Center through an existing Case Coordination system that

facilitates access to hospital- and community-based services for community reintegration; (2) determining the long-term outcomes of postacute rehabilitation pathways; (3) evaluating key outcome

predictors, including apolipoprotein and genotype; (4) examining the implications of violence for

outcome, costs, and special rehabilitation needs; (5) demonstrating innovative postacute rehabilitation and vocational interventions and evaluating their effectiveness through experimental and quasiexperimental designs; (6) further evaluating specialized TBI vocational services at the Mayo Brain

Injury Program that result in almost 75 percent of the people served in community-based placements; (7) extending Annegers’s previous population-based epidemiological studies of TBI to

determine the effect of severity and type of TBI (e.g., violent versus nonviolent) on outcomes and

costs; and (8) developing and testing cost models using prospective and retrospective data and

national Model TBI System data. This project contributes to the national statistics database at the

Kessler Medical Rehabilitation Research and Education Corporation.
2-52 Health and Function

Model Traumatic Brain Injury Systems

Mississippi

Traumatic Brain Injury (TBI) Model System of Mississippi (TBIMSM)

Methodist Rehabilitation Center

Brain Injury Program

1350 East Woodrow Wilson Center

Jackson, MS 39216

marks@mmrcrehab.org

http://www.mmrcrehab.org

Principal Investigator: Mark Sherer, PhD

Public Contact: 601/364-3448; Fax: 601/364-3452

Project Number: H133A980035

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01 $345,000

Abstract: The Traumatic Brain Injury Model System of Mississippi (TBIMSM) collaborates with

other Model TBI System projects, and performs a program of research and demonstration, dissemination, and collaborative projects. Issues addressed are of particular importance to people with TBI

who live in rural areas of Mississippi. The System contributes to improved understanding of methods of service delivery, interventions to improve vocational outcomes and community integration,

extended job coaching, rural versus urban outcomes, electrophysiology, awareness, depression,

delirium after TBI, key predictors of rehabilitation outcomes, the relationship of cost of care to

functional outcomes, and special implications of TBI caused by violence. Two demonstration

projects involve a Seizure Clinic and a Spasticity Clinic. Findings are disseminated to people with

TBI, their families and significant others, rehabilitation professionals, and makers of public policy

both locally and nationally. TBIMSM solicits support, feedback, and guidance from people with

TBI, family members, significant others, advocacy agencies, and service agencies to ensure that the

projects address the needs and concerns of these people and organizations. The system is a collaboration between the Mississippi Methodist Rehabilitation Center and the University of Mississippi

Medical Center. This project contributes to the national statistics database at the Kessler Medical

Rehabilitation Research and Education Corporation.
Health and Function 2-53

Model Traumatic Brain Injury Systems

Missouri

Missouri Model Traumatic Brain Injury System (MOMBIS)

University of Missouri/Columbia

Department of Physical Medicine and Rehabilitation

DC046.00

One Hospital Drive

Columbia, MO 65212

mombis@health.missouri.edu; nossamanl@health.missouri.edu

http://www.hsc.missouri.edu/~mombis

Principal Investigator: Brick Johnstone, PhD, 573/882-6258

Public Contact: Larry Nossaman, 573/884-2899 (V); 573/884-7971 (TTY); Fax: 573/884-2902

Project Number: H133A980008

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $344,999; FY 99 $344,999; FY 00 $344,999; FY 01 $344,999

Abstract: This model system, based in central Missouri, provides a continuum of TBI care to an

underserved and understudied population: communities that are primarily rural. The project also

completes a series of innovative research programs and contributes to the national statistics database

at the Kessler Medical Rehabilitation Research and Education Corporation. MOMBIS develops a

model system of care that: (1) investigates the efficacy of alternative methods of service-delivery

interventions after inpatient rehabilitation discharge and after other postacute treatment pathways;

(2) identifies and evaluates interventions using emerging technology that can improve vocational

outcomes and community integration; (3) develops predictors of rehabilitation outcome, including

subjective well-being, at hospital discharge and at long-term follow-up; (4) examines the relationships among cost of care, specific treatment interventions, and functional outcomes; and (5) examines implications of TBI caused by violence on treatment interventions, rehabilitation costs, and

long-term outcomes. Individual MOMBIS projects are evaluating the efficacy of a community-based

support system, the efficacy of a partial weight-bearing gait retraining program, and predictors of

vocational and financial success for clients of the state VR division. MOMBIS is also piloting

research in: (1) the transportation challenges of individuals with TBI in rural areas and how those

challenges affect outcomes, (2) the actual amount and source of public and private financial assistance being received by individuals with TBI, and (3) the relationship between challenges in access

to environmental resources and outcomes for individuals with TBI living in rural areas of Missouri.
2-54 Health and Function

Model Traumatic Brain Injury Systems

New Jersey

Northern New Jersey Traumatic Brain Injury System (NNJTBIS)/

NIDRR TBI Model Systems National Database

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

tbi@kmrrec.org

http://www.kmrrec.org/KM/nnjtbis/index.html

Principal Investigator: Mark V. Johnston, PhD, Project Director, TBIMS; Mitchell Rosenthal,

PhD, Project Director, TBI National Database

Public Contact: 973/243-2015; Fax: 973/243-6963

Project Number: H133A980030

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $343,381; FY 99 $343,381; FY 00 $343,381 (NNJTBIS); $250,000

(National TBI MS Database) FY 01 $343,381 (NNJTBIS) $250,000 (National TBI MS Database)

Abstract: The Northern New Jersey Traumatic Brain Injury System (NNJTBIS) is a comprehensive

set of projects designed to improve the quality of care for people with TBI in New Jersey and to

answer selected research questions. In both research and development projects, the NNJTBIS emphasizes the interplay of medical, neuropsychological, social, and economic factors. Three small

randomized clinical trials include: an intervention program to train caregivers to manage behavior

problems in the home or other natural settings, a program of cognitive remediation and cognitivebehavioral therapy for people with TBI living in the community, and an improvement to a cognitive

remediation program involving enhanced choice by the person with TBI. Other research addresses

issues of: how to improve outcome measures by incorporating the expressed values and perceptions

of people served, financial issues and costs, the implications of violence in the etiology of TBI,

substance abuse, and consequences of delay or refusal of Medicaid coverage for people with severe

TBI injuries. Demonstration projects fill gaps in VR in New Jersey by providing augmented work

trials and education of VR counselors regarding TBI, develop trial cognitive remediation and social

support tools for the Internet, and educate emergency room personnel regarding mild TBI. Educational offerings for people with TBI, their families, and professionals are provided through conferences, retreats, talks, support groups, and development of a TBI resource center. Local advisory

boards advise System staff, and plans include a task force to improve the system of care in New

Jersey. The project currently manages the national statistics database for the Model TBI System

projects. Additional goals include coordinating research and dissemination activities with other

NIDRR TBI grantees to optimize research output, minimize redundancy of effort, and engage in

collaborative dissemination. This project participates in the NIDRR Scholars program, providing

motivated undergraduates with internship experience in disability research.
Health and Function 2-55

Model Traumatic Brain Injury Systems

North Carolina

The Carolinas Traumatic Brain Injury Rehabilitation and Research

System (CTBIRRS)

Charlotte-Mecklenburg Hospital Authority

Charlotte Institute of Rehabilitation

1100 Blythe Boulevard

Charlotte, NC 28203

ssaunders@carolinas.org

http://www.carolinas.org

Principal Investigator: Flora Hammond, MD

Public Contact: 704/355-1502; 704/355-4330; Fax: 704/355-7903

Project Number: H133A980025

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01 $345,000

Abstract: The Carolinas Traumatic Brain Injury Rehabilitation and Research System (CTBIRRS)

improves the lives of people with newly acquired TBI through a comprehensive service delivery

system. Research studies investigate: (1) the effectiveness of alternatives to a comprehensive outpatient brain injury day program; (2) the use of a Community Transition Coordinator to improve

access to services and enhance community reintegration; (3) the novel use of an electronic personal

organizer as a memory aid; (4) the predictability of functional outcomes, quality of life, and cost of

care for those with TBI; (5) the impact of TBI on spouses and significant others; (6) the efficacy and

cost of serial casting versus ultrasound with weight bearing for contractures; (7) epidemiologic

characteristics, rehabilitation costs, and outcomes of violence-induced TBI compared to nonviolent

TBI incidence; (8) the costs and outcomes of depression following violence-induced TBI versus

nonviolent TBI; and (9) the outcomes of those who suffer severe TBI who do not receive inpatient

rehabilitation. Five of the studies involve collaboration with other NIDRR Model Systems. In

addition, researchers collaborate with a non-Model-Systems NIDRR grantee to address TBI-related

issues. CTBIRRS disseminates research findings via telemedicine; a Web site; local and national

committees, programs, conferences, and peer-reviewed publications; and provides free computer and

Internet access for people with disabilities. This project contributes to the national statistics database

at the Kessler Medical Rehabilitation Research and Education Corporation.
2-56 Health and Function

Model Traumatic Brain Injury Systems

Ohio

Ohio Regional Traumatic Brain Injury Model System

Ohio Valley Center for Brain Injury Prevention and Rehabilitation

Department of Physical Medicine and Rehabilitation

Dodd Hall

480 West Ninth Avenue

Columbus, OH 43210

lamb-hart.1@osu.edu

http://www.ohiovalley.org

Principal Investigator: John D. Corrigan, PhD, 614/293-3830

Public Contact: Gary Lamb-Hart, 614/293-3802; Fax: 614/293-8886

Project Number: H133A70032

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 97 $344,975; FY 98 $344,975; FY 99 $344,975; FY 00 $344,975; FY 01

$344,975

Other Funding: FY 00 $342,247 (Center for Substance Abuse Treatment (CSAT) at the Substance

Abuse and Mental Health Administration (SAMSA)); $41,339 (RRTC on Drugs and Disability,

Wright State University); $82,678 (Ohio Rehabilitation Services Commission)

Abstract: The Ohio Regional Traumatic Brain Injury Model System serves a population of two

million people living in 21 urban and rural counties in central and southern Ohio. It provides specialized care from emergency evacuation through community integration and lifelong living. The

project is a collaborative effort of the Ohio State University Medical Center, OhioHealth’s Grant

Medical Center, and the Ohio Valley Center for Brain Injury Prevention and Rehabilitation. This

project contributes to the national statistics database at the Kessler Medical Rehabilitation Research

and Education Corporation.
Health and Function 2-57

Model Traumatic Brain Injury Systems

Oregon

Oregon Traumatic Brain Injury Model System

Oregon Health and Science University

3181 Southwest Sam Jackson Park Road, L472

Portland, OR 97201-3098

carneyn@ohsu.edu

http://www.ohsu.edu/som-ntrg/neurotrauma/otbims.html

Principal Investigator: Nancy Carney, PhD

Public Contact: 503/494-0663; Fax: 503/494-4640

Project Number: H133A980027

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01 $345,000

Abstract: This model system compares treatment and outcomes among people with TBI cared for

within the model system versus those who follow alternative care paths. The sample: (1) includes

trauma system patients who remain in Portland and those who return to rural homes after discharge,

allowing for a comparison of care paths as determined by environment; (2) assesses outcomes based

on the type and extent of care by evaluating payer programs by level and type of funding; and (3)

develops and validates two key predictors of outcome: a measure of acute care and a social adjustment scale. This understanding of outcomes as determined by care path (model versus alternative),

environment (rural versus urban), and payer program (level of funding) is used to address the three

primary needs of Oregon residents with TBI and their families: information, access, and quality.

Ancillary demonstration projects implement and evaluate caregiver training and home-based

multidisciplinary rehabilitation as an alternative to postacute treatment interventions. This project

contributes to the national statistics database at the Kessler Medical Rehabilitation Research and

Education Corporation.
2-58 Health and Function

Model Traumatic Brain Injury Systems

Pennsylvania

A Model System of Brain Injury Care in the Philadelphia Region

MossRehab

1200 West Tabor Road, Korman Suite 213

Philadelphia, PA 19141-3099

jwhyte@aehn2.einstein.edu

http://www.einstein.edu/mossrehab/research

Principal Investigator: John Whyte, 215/456-5924

Public Contact: Robert Meighan, 215/456-5966; Fax: 215/456-5926

Project Number: H133A70033

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 97 $345,000; FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01

$345,000

Abstract: This TBI Model System of Care serves people with TBI and their families in the greater

Philadelphia region. A full continuum of TBI services is provided through the Drucker Brain Injury

Center at MossRehab, using a transdisciplinary dedicated team model. Postacute services are community-based and include a client-directed Clubhouse and an Affirmative Business. The Model

System provides extra case management and tracking to meet the needs of enrollees, many of whom

are inner-city residents with social and economic disadvantages. There is also a strong emphasis on

research. This project contributes to the national statistics database at the Kessler Medical Rehabilitation Research and Education Corporation. In addition, 11 local and collaborative projects address

topics such as the evaluation and rehabilitation of motor control, the effects of emerging technologies on social and vocational outcome, psychosocial factors affecting recovery, and the clinical

assessment of attention. Other research projects are concerned with the prediction of rehabilitation

costs, case mix adjustment for improved outcome prediction, and the effects of service availability

on outcome. Three consumer Advisory Boards operate to provide feedback and quality improvement to both research and clinical programs. The Model System project is a collaboration among

MossRehab/MRRI and the trauma/neurosurgery services of Albert Einstein Medical Center and

Temple University Hospital.
Health and Function 2-59

Model Traumatic Brain Injury Systems

Texas

Traumatic Brain Injury Model System of TIRR

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Avenue

Houston, TX 77030

whigh@bcm.tmc.edu

http://www.tbims.org

http://www.braininjuryresearch.org

Principal Investigator: Walter M. High Jr., PhD

Public Contact: 713/666-9550; Fax: 713/668-5210

Project Number: H133A70015

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $345,000; FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01

$345,000

Abstract: This project develops and demonstrates a comprehensive, multidisciplinary rehabilitation

services model system for people with TBI. The project: (1) investigates the efficacy of alternative

methods of service delivery interventions after inpatient rehabilitation discharge and after other

postacute treatment pathways; (2) identifies and evaluates interventions, including those using

emerging technology, that can improve vocational outcomes and community integration; (3) develops key predictors of rehabilitation outcome, including subjective well-being at hospital discharge

and at long-term follow-up; (4) determines the relationship between cost of care, specific treatment

interventions, and functional outcomes; and (5) examines the implications of violence as a cause of

TBI on treatment interventions, rehabilitation costs, and long-term outcomes. This project contributes to the national statistics database at the Kessler Medical Rehabilitation Research and Education

Corporation. It participates in collaborative projects with other model system programs and coordinates research efforts with other NIDRR grantees that address TBI-related issues.
2-60 Health and Function

Model Traumatic Brain Injury Systems

Virginia

Virginia Traumatic Brain Injury Model System

Virginia Commonwealth University

Department of Physical Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0452

jmarwitz@hsc.vcu.edu

http://www.neuro.pmr.vcu.edu

Principal Investigator: Jeffrey S. Kreutzer, PhD

Public Contact: Jennifer Marwitz, 804/828-3704; Fax: 804/828-2378

Project Number: H133A980026

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $344,914; FY 99 $344,914; FY 00 $344,914; FY 01 $344,914

Abstract: The Virginia Traumatic Brain Injury Model System has four research projects and three

demonstration projects. The System: (1) examines the needs, outcomes, and costs of alternative

service delivery systems; (2) examines the etiology and incidence of rehospitalization in the one-tofour years following TBI to evaluate predictors of acute rehospitalization and to characterize the

relationship between rehospitalization and long-term outcomes; (3) investigates identification and

placement practices in secondary schools and tracks educational and vocational outcomes for youth

with TBI, and identifies best practices to facilitate mainstreaming and optimal educational and

vocational outcomes; (4) compares the costs of violent injury to the costs of other causes, identifies

the types and intensities of services used by victims of violence, relates the intensity of services to

payer source and other demographic information, evaluates long-term implications by assessing

employment, community integration, substance abuse status, and subjective well-being, and identifies characteristics that predispose a person to violent injury; (5) assesses vocational outcomes in

return-to-work interventions for people with mild and moderate brain injuries; (6) develops, with

consumer input, a consumer education and self-advocacy workshop given throughout the state; and

(7) develops a “best practices” handbook on work supports for people with brain injury that is field

tested and disseminated via the Internet and other avenues. This project contributes to the national

statistics database at the Kessler Medical Rehabilitation Research and Education Corporation.
Health and Function 2-61

Model Traumatic Brain Injury Systems

Washington

The University of Washington Traumatic Brain Injury Model System

University of Washington

Department of Rehabilitation Medicine

Box 356490 BB-941 Health Sciences

Seattle, WA 98195

dikmen@u.washington.edu

http://depts.washington.edu/rehab/tbi

Principal Investigator: Sureyya S. Dikmen, PhD

Public Contact: Kathy Bell, MD, 206/685-0935; Fax: 206/685-3244

Project Number: H133A980023

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01 $345,000

Abstract: The University of Washington Traumatic Brain Injury Model System operates a comprehensive, multidisciplinary Model System of Care serving people with TBI from the time of injury to

integration into the community. The System: performs innovative research and demonstration

projects; contributes to the national statistics database at the Kessler Medical Rehabilitation Research and Education Corporation; collaborates with other model system sites in addressing TBIrelated issues; and engages in dissemination activities that include professionals, people with brain

injury and their families, and the community at large. The Department of Rehabilitation Medicine at

the University of Washington Academic Medical Center, which includes Harborview Medical

Center and the University of Washington Medical Center, collaborates to conduct: a randomized,

controlled trial examining the impact of scheduled, system-initiated telephone intervention on

outcome (including employment and community integration); two studies examining the state and

federal costs of TBI, and cost-effectiveness of the randomized study; two complementary studies

examining early costs and discharge decisions in violence-related TBI and the relationship among

violence, rehabilitation services received, and long-term outcome; a study examining long-term

outcome as a function of alternative pathways of postacute treatment; and three demonstration

projects, with two using technology to develop community-based resources and professional communication.
2-62 Health and Function

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

Alabama

Use of Propranolol to Manage Behavioral Dysfunction and Agitation in

Persons with Postacute Brain Injury

University of Alabama/Birmingham

Department of Physical Medicine and Rehabilitation

619 - 19th Street South, SRC 529

Birmingham, AL 35294-7330

meythaler@sun.rehabm.uab.edu

http://main.uab.edu/show.asp?durki=30833

Principal Investigator: Jay M. Meythaler, JD, MD, 205/934-2088

Public Contact: Alice Johnson, 205/934-9494; Fax: 205/975-4896

Project Number: H133G000072

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $123,967; FY 01 $123,967

Abstract: This project conducts research to confirm the empirically reported efficacy of the betaadrenergic receptor blocker propranolol in managing behavioral dyscontrol following brain injury

(BI) in the postacute phase (greater than one year). The study builds on published case reports of

propranolol’s effectiveness. It implements the first-ever randomized double-blind crossover trial of

propranolol with placebo control in 50 individuals who are more than one year post-BI, in an outpatient setting. The project establishes whether propranolol decreases the behavioral dyscontrol and

agitation commonly seen in postacute BI; despite widespread empirical use of propranolol, such

decreases have never been established conclusively. It also provides for detailed measurement of

possible neurocognitive side effects of propranolol, which were not evaluated in previous studies.

The study utilizes the Agitated Behavioral Scale (ABS) for valid and reliable measurement of

agitation. The project utilizes functional brain imaging techniques to provide preliminary insights

into possible sites and mechanisms of action. If propranolol is thus documented to be useful in the

postacute BI population, functional MRI and SPECT studies exploring its mechanisms of action is

warranted.
Health and Function 2-63

Field-Initiated Projects (FIPs)

Arkansas

Developing a Rehabilitation Service Delivery Model for Minority

Farmers with Disabilities

University of Arkansas/Pine Bluff

Agricultural Economics

1200 North University Drive

Mail Slot 4913

Pine Bluff, AR 71601

mwachofi_a@vx4500.uapb.edu

Principal Investigator: Ari K. Mwachofi, PhD

Public Contact: 870/575-7143; Fax: 870/543-8543

Project Number: H133G000192

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $150,000; FY 01 $150,000

Abstract: This project gathers data from farmers and service providers in Arkansas, Louisiana, and

Mississippi. Using the survey data, the project constructs a model of rehabilitation service delivery

for minority farmers with disabilities based on their needs, perceptions, disabilities, and the most

effective methods of reaching and communicating with them. The main thrust of the project is active

participation by minority farmers in research and model building. Project objectives are to: (1)

identify and interview minority farm households that have members with disabilities; (2) identify

and interview nonminority farm households that have members with disabilities; (3) interview

rehabilitation counselors and county extension agents; (4) build a service delivery model based on

analyses of responses of the farmers, rehabilitation counselors and county extension agents; and (5)

disseminate model and research findings.
2-64 Health and Function

Field-Initiated Projects (FIPs)

California

Cardiovascular Disease in Women with Spinal Cord Injury and Its

Effect on Participation in Community Activities

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, HB-145

Downey, CA 90242

Principal Investigator: Yaga Szlachcic, MD

Public Contact: Rodney Atkins, PhD; Lili Thompson, PT, 562/401-7221; Fax: 562/803-6354

Project Number: H133G010160

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $141,470

Abstract: The goals of this project are: (1) to profile cardiovascular disease (CVD) risk factors in

women with SCI, (2) to assess the relationships between CVD risk factors and “observable” CVD in

this group, (3) to assess the associations of CVD risk factors and observable CVD with quality of

life and with participation in community activities among women with SCI, (4) to evaluate standard

interventions for lipid abnormalities and CVD in women with SCI, and (5) to assess the impact lipid

and CVD interventions have on the quality of life and community activity participation of women

with SCI. For these goals “observable” CVD refers to atherosclerotic burden by carotid arterial

intima-media thickness (IMT).
Health and Function 2-65

Field-Initiated Projects (FIPs)

California

Daily Living Context and Pressure Sores in Consumers with Spinal

Cord Injury

University of Southern California

Department of Occupational Science and Occupational Therapy

1540 Alcazar Street, CHP-133

Los Angeles, CA 90089-9003

jwise@usc.edu

http://www.usc.edu/hsc/ihp/ot

Principal Investigator: Florence Clark, PhD, OTR, 323/442-2875

Public Contact: Janis Wise, 323/442-2851; Fax: 323/442-1540

Project Number: H133G000062

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $149,942; FY 01 $147,834

Abstract: This project examines the beliefs and practices underlying the activities, habits, and daily

routines of 18 ethnically diverse consumers with SCI. The intent is to document how personality,

lifestyle patterns and choices, and environmental context mutually interact within the individually

constructed lives of consumers to influence the development of pressure sores. The problem of

recurrent, medically serious pressure sores represents a key challenge to the ability of individuals

with SCI to experience a full and satisfying life. Although prior research has documented that the

development of pressure sores is in general linked to psychosocial and environmental variables,

there is a need to obtain new, consumer-centered information about how pressure sores can be

minimized through personally tailored adaptive strategies that are responsive to the opportunities

and difficulties embedded in the unique sets of everyday circumstances that characterize individual

lives. A variety of data collection procedures, including participant observation as well as interviews

with consumers, their caregivers, and other associated persons, are analyzed to generate results that

are comprehensive and trustworthy. These results are used to develop a series of applied products,

including: (1) a consumer-oriented self-help manual; (2) a set of guidelines for rehabilitation practice; and (3) a lifestyle-oriented occupational therapy treatment model. Consumer representatives

contribute to all aspects of the project to ensure that it is relevant and maximally useful to the target

population.
2-66 Health and Function

Field-Initiated Projects (FIPs)

Delaware

Investigation of the Dynamics of Spasticity in Children with Cerebral

Palsy

Alfred I. duPont Hospital for Children

1600 Rockland Road

Wilmington, DE 19899-0269

http://www.kidshealth.org

Principal Investigator: Freeman Miller, MD

Public Contact: Dyonne Knotts, 302/651-5921; Fax: 302/651-5951

Project Number: H133G010041

Start Date: November 1, 2001

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $149,708

Abstract: This project creates a new assessment tool for spasticity in cerebral palsy that quantifies

both the long-term changes in muscle structure and the short-term effects of the hyperexcitable

stretch reflex. The result is a comprehensive testing protocol that can be used in a wide range of

therapeutic interventions. The new device can apply torques about the knee and ankle of a limb with

spasticity in such a way that velocity, acceleration, and the third derivative, jerk, can be varied and

resistance of the limb to movement measured. The device can be used (1) to investigate the reflex

resistance to movement elicited by constant velocity, constant acceleration, and constant jerk; and

(2) to define the passive biomechanics of the limb by applying short duration pulses of torque to the

limb combined with the limb’s position, velocity, and acceleration. This work is unique in the

recognition of the limb with spasticity as a closed loop system consisting of the biomechanics of the

limb and the reflexes (due to motion) feeding back on that limb. As a result of using the new tool,

many therapy protocols such as hippotherapy, stretching, hydrotherapy, range of motion exercises,

and others may be found to be of significant benefit to one component of spasticity over the other.
Health and Function 2-67

Field-Initiated Projects (FIPs)

Georgia

Aging After Spinal Cord Injury: Three Decades of Longitudinal

Research

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road Northwest

Atlanta, GA 30309-1465

glenn_allen@shepherd.org

http://www.shepherd.org/shepherdhomepage.nsf/Pages/EducationCrawford?OpenDocument

Principal Investigator: J. Stuart Krause, PhD, 404/350-7551

Public Contact: Glenn Allen, 800/582-6360; 404/350-7670; Fax: 404/350-7596

Project Number: H133G010009

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $149,850

Abstract: This study performs a sixth data collection in the ongoing Minnesota longitudinal study

(MLS) in order to identify how the life situation of people with SCI has changed over the past three

decades, with an emphasis on evaluating the roles of aging and environmental change. This study

has used a revolving prospective panel design that follows participants longitudinally over time,

adding new samples at different times to counteract attrition. The study was initiated in 1973, with

three subsequent follow-ups carried out over a 25-year period (1984, 1988, 1993, and 1998). A

Southeastern sample was added in 1993 to add a more diverse participant sample with a larger

portion of women and minorities. The 699 respondents from the 25-year follow-up and a new

sample of 500 individuals with SCI are to be asked to complete materials. This sixth study stage is

the most extensive follow-up yet performed, with the addition of several new measures that include:

(1) portions of the Behavioral Risk Factor Surveillance System (BRFSS); (2) expanded assessment

of employment history; (3) a measure of depression that was specially designed to avoid items that

are confounded with health conditions (the Older Adult Health and Mood Questionnaire, OAHMQ);

and (4) a standardized measure of environment, the Craig Hospital Inventory of Environmental

Factors (CHIEF). This study also has the added benefit of greater consumer involvement at each

step of the study. Results of the study enhance both rehabilitation professionals’ and consumers’

understanding of the consequences of aging with SCI and lay the foundation for future interventions.
2-68 Health and Function

Field-Initiated Projects (FIPs)

Illinois

The SPIRATE Project (Spinal Injury Risk Assessment for

ThromboEmbolism)

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1407

Chicago, IL 60611

d-green@nwu.edu

Principal Investigator: David Green, MD, PhD

Public Contact: 312/238-4701; Fax: 312/238-1815

Project Number: H133G990046

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $135,244; FY 00 $139,362; FY 01 $143,645

Abstract: The purpose of this study is to develop a risk assessment methodology to guide the

intensity and duration of antithrombotic prophylaxis. The study is performed in two parts: a retrospective analysis of 500 patients treated by the Midwest Regional Spinal Cord Injury Care System

over the past decade, and a prospective analysis of 100 patients admitted for care of spinal cord

injury. In the first part, archival data on the 500 patients is analyzed to identify risk factors for

thromboembolism. In the second part, the 100 patients all receive prophylaxis consisting of compression leggings and Heparin, they are examined daily for clinical evidence of thrombosis, and they

have bilateral contrast venography prior to discharge. Three risk scoring systems are tested. The first

is based on the retrospective study. The second is expanded to include additional factors such as

functional measures and emotional well-being assessments. A third risk scoring system, to be developed, includes the data from the second system as well as the day-to-day changes in the symptoms

recorded over the course of the study for individual patients. The cross-generalizability of the

systems is assessed, and the final instrument is used to assign patients at high risk to more intensive

prophylaxis.
Health and Function 2-69

Field-Initiated Projects (FIPs)

Illinois

Secondary Prevention Trial of Exercise and Diet for Improvement of

Physical Fitness, Independence, and Overall Health in Adult

Paraplegics

University of Illinois/Chicago

College of Health and Human Development Sciences

Department of Human Nutrition and Dietetics

M/C 517

Chicago, IL 60612

braunsch@uic.edu

http://www.uic.edu/orgs/sci-adapt

Principal Investigator: Carol Braunschweig, PhD

Public Contact: 312/996-8055; Fax: 312/413-0319

Project Number: H133G990143

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $149,959; FY 00 $149,988; FY 01 $149,659

Abstract: This project investigates the impact of an exercise intervention coupled with nutrition

education on the strength and fitness of a sample of overweight paraplegics with chronic illnesses.

This intervention improves cardiovascular fitness and strength leading to improved independence

and improved overall health. The research objectives are to recruit adult paraplegics with chronic

disease for involvement in the program and then to compare the effects of the program on physical

fitness in participants who have completed the program to physical fitness in those participants

randomized but waiting, during the same 12 weeks, to begin the intervention. The impact of the

program is assessed using changes in strength and body composition, levels of independence, dietary

knowledge and intakes, blood pressure, the total-to-high-density lipoprotein cholesterol ratio, bone

mineral density, and fasting glucose concentrations.
2-70 Health and Function

Field-Initiated Projects (FIPs)

Illinois

Development of an Intelligent Therapeutic Stretching Device for

Stroke Patients

Rehabilitation Institute of Chicago

345 East Superior Street, Room 1406

Chicago, IL 60611-4496

l-zhang@northwestern.edu

http://p3.smpp.northwestern.edu

Principal Investigator: Li-Qun Zhang, PhD

Public Contact: 312/238-4767; Fax: 312/238-2208

Project Number: H133G010066

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $148,822

Abstract: This project develops a useful and practical ankle stretching device with advanced control

features that can be used by therapists and individuals who are post-stroke. Project activities include:

(1) developing a portable stretching device with intelligent control to stretch an ankle joint with

spasticity/contracture safely and repeatedly throughout the ankle range of motion (ROM) to reduce

spasticity/contracture, (2) evaluating the outcome quantitatively, and (3) comparing it with a continuous passive motion (CPM) machine. The device stretches the joint safely to extreme dorsi- and

plantar-flexion until a specified peak resistance torque is reached with precise control of stretching

velocity, based on resistance torque. Outcome is evaluated quantitatively in multiple aspects during

each of the stretching sessions. Changes in joint intrinsic properties are quantified by the passive

ROM, joint stiffness, viscous damping, and energy loss during the controlled passive stretching,

while the reflex changes are quantified by reflex gain and threshold. Functional changes induced by

the stretching are evaluated through the active ROM, plantar and dorsi-flexor co-contraction, and

foot-drop and walking speed during locomotion. In general, similar stretching devices can be developed to treat spastic joints other than the ankle and other neurologically impaired populations

troubled by spasticity/contracture. Finally, the stretching device is portable and has a relatively low

cost, making it convenient and economical for patients to use in a clinic or at home.
Health and Function 2-71

Field-Initiated Projects (FIPs)

Illinois

Development of a Pressure Ulcer Prevention Beliefs Instrument for

Persons with Spinal Cord Injury

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1436

Chicago, IL 60611-4496

rbking@northwestern.edu

Principal Investigator: Rosemarie B. King, PhD

Public Contact: 312/908-8038; Fax: 312/503-5868

Project Number: H133G010058

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $148,101

Abstract: This project develops a measure that clinicians can use to assess the health beliefs of

persons with SCI regarding pressure ulcer (PU) prevention. The goals of the study are to: (1) develop an instrument to measure PU-prevention health beliefs that is reliable by collecting qualitative

data on perceptions about PU risk and seriousness, barriers to and benefits of preventive skin care,

and confidence in performing skin care; (2) develop a health beliefs instrument that is structurally

and theoretically valid; and (3) describe the pressure ulcer prevention beliefs of 375 persons with

recent or chronic SCI. Findings facilitate the development of health belief-based interventions that

address the multifactorial basis of risk for PU development. The addition of skin care health beliefs

to risk prediction instruments should increase the predictive power of such instruments.
2-72 Health and Function

Field-Initiated Projects (FIPs)

Maryland

Consumers’ Participation in Nursing Home Decision-making

Preferences and Perceptions

University of Maryland/Baltimore County

Policy Sciences Graduate Program

1000 Hilltop Circle

Baltimore, MD 21250

nanmille@umbc.edu

Principal Investigator: Nancy Miller, PhD

Public Contact: 410/455-3889; Fax: 410/455-1172

Project Number: H133G000068

Start Date: June 1, 2000

Length: 36 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $149,556; FY 01 $149,067

Abstract: This project examines decision-making about long-term care, as it relates to institutional

admission and discharge, viewing these decisions as having a critical influence on the opportunities

individuals have to attain valued long-term care goals. The study explores the decision-making

process of a nursing home population for which little information is available—working-age residents. Current research has focused on acute care for the most part; limited attention has been given

to consumer values and preferences in long-term care and the role, if any, these play in long-term

care decisions. Specific objectives and analyses include describing the level of consumer participation in the nursing home admission decision and describing the perceived adequacy of participation

in decision-making by consumers.
Health and Function 2-73

Field-Initiated Projects (FIPs)

Maryland

Increasing States’ Allocations of Medicaid Dollars to CommunityBased Care: Where Might Policy Intervene?

University of Maryland/Baltimore County

Policy Sciences Graduate Program

1000 Hilltop Circle

Baltimore, MD 21250-0001

nanmille@umbc.edu

Principal Investigator: Nancy Miller, PhD

Public Contact: 410/455-3889; Fax: 410/455-1172

Project Number: H133G010023

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 01 $148,706

Abstract: This research project features two related studies. First, the project examines factors that

influence community-based care expenditures for different subgroups of individuals with disabilities. Analyses focus on Medicaid 1915(c) waiver expenditures, examining the effect of a set of statelevel variables shown in previous work to be related to state fiscal effort, on expenditures for five

segments of the population: the frail elderly, individuals with developmental disabilities, younger

people with disabilities, persons with AIDS, and children with a variety of disabling conditions.

Research identifies the extent to which variables amenable to policy influence are either shared, or

differ across segments of the population with disabilities. Second, the project examines the relationship between increased use of 1915(c) waiver services and total, as well as institutional, long-term

care expenditures. Research examines the extent to which states can redirect institutional dollars to

community-based care without increasing total long-term care expenditures. Community-based care

services are, on average, noticeably less costly than institutional services; if the site of care is the

community rather than the institution more individuals are able to access care. Providing greater

access to long-term care in preferred community settings, without increasing total long-term care

costs, is viewed as evidence of cost effectiveness. Cost concerns have repeatedly been raised in

discussions to expand community-based care. By focusing on Medicaid 1915(c) waiver programs,

this project provides important cost effectiveness information not presently available.
2-74 Health and Function

Field-Initiated Projects (FIPs)

Maryland

Bilateral Arm Training in Patients with Chronic Hemiparesis

University of Maryland

100 Penn Street

Baltimore, MD 21201-1082

jwhitall@som.umaryland.edu

Principal Investigator: Jill Whitall, PhD

Public Contact: 410/706-0764; Fax: 410/706-6387

Project Number: H133G010111

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $148,579

Abstract: This project uses a randomized controlled study to test the validity of low intensity

repetitive bilateral arm training with rhythmic auditory cuing to improve upper extremity (UE)

motor function. This training program is based on principles of motor learning and control. A longterm objective of this research program is to understand the principles and mechanisms underlying

UE stroke rehabilitation and to provide a scientific basis for planning treatments for stroke rehabilitation.
Health and Function 2-75

Field-Initiated Projects (FIPs)

Maryland

Measuring Functional Communication: Multicultural and

International Applications

American Speech-Language-Hearing Association

10801 Rockville Pike

Rockville, MD 20852

dpaulbrown@asha.org

http://www.asha.org

Principal Investigator: Diane Paul-Brown, 301/897-5700, ext. 4297

Public Contact: Carol Caperton, 301/897-5700, ext. 4231; Fax: 301/897-7354

Project Number: H133G70055

Start Date: May 1, 1997

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 97 $125,000; FY 98 $125,000; FY 99 $125,000; FY 00 (No-cost extension

through 4/30/01); FY 01 (No-cost extension through 12/31/01)

Abstract: The long-term objective of this project is to improve the quality of life for adults with

communication disabilities by expanding and validating an assessment tool for multicultural and

international populations. Assessments can then be made regarding communication functions and

needs, and rehabilitation can be individualized to optimize the person’s ability to communicate in

their natural environments. Reliable communication skills are a requisite for individuals to achieve

their social, educational, and vocational potentials, and for patients to understand and participate in

their care and recovery. Activities of this project include: (1) development of a measure of quality of

communicative life; (2) validation of the extended American Speech-Language-Hearing Association

Functional Assessment of Communication Skills for Adults with multicultural groups including

African Americans, Asian Americans, Caucasian, Hispanic, and Native Americans; (3) validation

with various populations with communication disorders such as those caused by brain injury, stroke,

Alzheimer’s disease and related dementias, and acquired neurological disorders; and (4) validation

in other English-speaking countries.
2-76 Health and Function

Field-Initiated Projects (FIPs)

Massachusetts

The Parenting Options Project: A Development Project for Parents

with Psychiatric Disabilities

University of Massachusetts Medical School

Department of Psychiatry

55 Lake Avenue North

Worcester, MA 01655

joanne.nicholson@umassmed.edu

http://www.umassmed.edu/pop

Principal Investigator: Joanne Nicholson, PhD

Public Contact: Jonathan Clayfield, 508/856-8721; Fax: 508/856-8700

Project Number: H133G70079

Start Date: July 1, 1997

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 97 $125,000; FY 98 $124,408; FY 99 $124,671; FY 00 (No-cost extension

through 6/30/01); FY 01 (No-cost extension through 6/30/02)

Abstract: The purpose of this project is to develop new rehabilitation techniques focusing on

parents with psychiatric disabilities, an emerging population whose needs often have been ignored

by rehabilitation specialists and mental health service providers. Existing parent education programs

often are based on traditional clinical models developed for children at risk of child abuse, or models

developed for parents without disabilities. Because consumers are not active participants in program

development, existing services often are irrelevant to parents with psychiatric disabilities, and may

present barriers to parents’ participation. No parent skills training model has been developed with

systematic input from all stakeholders, and no goal-setting or assessment tool exists for this significant domain of adult functioning. Employing participatory action research (PAR) strategies, the

project’s goals are to: (1) develop an education and skills training curriculum for parents with

psychiatric disabilities, (2) develop a goal-setting and assessment tool for parents and related professionals, and (3) evaluate the PAR development process.
Health and Function 2-77

Field-Initiated Projects (FIPs)

Michigan

Repetitive Intensive Training Exercise: Effect on Upper Extremity

Motor Function in Spasticity

University of Michigan

Department of Physical Medicine and Rehabilitation

Wolverine Tower, Room 1056

3003 South State Street

Ann Arbor, MI 48109-0042

ehurvitz@umich.edu

Principal Investigator: Edward Hurvitz, MD

Public Contact: 734/936-7200; Fax: 734/936-6121

Project Number: H133G000058

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $149,854; FY 01 $149,993

Abstract: Using motor control testing techniques, this project studies the effect of a repetitive,

intensive training intervention on upper limb function. It investigates whether a program of repetitive, intensive training exercises designed to improve motor coordination leads to greater improvement in motor performance than either a group receiving a more typical frequency of intervention or

a control group receiving a socialization intervention. A further goal is to determine if evidence

exists of carry-over once the intervention is terminated. The study includes 36 subjects between the

ages of 6 and 15 who have upper extremity spasticity of cerebral origin.
2-78 Health and Function

Field-Initiated Projects (FIPs)

Minnesota

Effect of Motor Learning Procedures on Brain Reorganization in

Subjects with Stroke

University of Minnesota

Program in Physical Therapy

Box 388 Mayo

Minneapolis, MN 55455

carey007@tc.umn.edu

Principal Investigator: James Carey, PhD

Public Contact: 612/626-2746; Fax: 612/625-7192

Project Number: H133G80041

Start Date: July 1, 1998

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $105,969; FY 99 $108,461; FY 00 $99,178; FY 01 (No-cost extension

through 12/31/01)

Abstract: This project determines whether elements of motor learning can promote brain reorganization and recovery of function in individuals with stroke. Two interventions have been shown to be

effective in helping people recover from stroke: “forced use” of the weak side and electrical stimulation. Investigators have hypothesized that these treatments may unmask dormant motor centers or

improve synaptic effectiveness, but no evidence has been forthcoming. The project involves two

experiments: (1) subjects with stroke receive 20 training sessions at a finger movement tracking task

in which they are forced to process the perceptual motor information mentally and learn to respond

accurately, and (2) different subjects with stroke receive 20 days of electrical stimulation to the weak

forearm muscles. For both experiments, changes in finger function are measured with tracking and

manual dexterity tests. Neuroplastic changes in the brain are measured with functional magnetic

resonance imaging. This project may show for the first time that physical rehabilitation procedures

may stimulate beneficial reorganization of the brain following stroke and invite further experiments

to optimize treatments.
Health and Function 2-79

Field-Initiated Projects (FIPs)

Minnesota

Effect of Electrical Stimulation on Brain Reorganization in Subjects

with Stroke

University of Minnesota

MMC 388

Minneapolis, MN 55455-2070

carey007@umn.edu

Principal Investigator: James R. Carey, PhD

Public Contact: 612/626-2746; Fax: 612/625-7192

Project Number: H133G010077

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $149,995

Abstract: This project studies the effects of training finger movement control in subjects with

stroke using a finger movement tracking paradigm on manual skill and also on brain reorganization,

as measured by functional magnetic resonance imaging (fMRI). Although brain imaging studies

show evidence of brain reorganization in individuals who have recovered from stroke, these studies

have not examined the subjects before and after their rehabilitation. Electrical stimulation has been

found to be effective in helping recover hand function in many but not all individuals with stroke.

This project instructs subjects with stroke in aggressive (six hours per day) electrical stimulation

treatment to be done in their own home. Furthermore, it explores whether the sensory bombardment

that occurs centrally with electrical stimulation causes an expansion of cortical activity and whether

this might be the mechanism for improved manual control following treatment. Subjects with stroke

are assigned randomly to either an electrical stimulation group or a control group. Appropriate tests

of manual performance as well as brain imaging using a 4 Tesla magnet are conducted at pretest,

post-test, and follow-up. This research has the potential of uncovering important information on

recovery from stroke that invites many more studies in the future.
2-80 Health and Function

Field-Initiated Projects (FIPs)

Minnesota

Personalized Health Care for Individuals with Physical Disabilities:

Satisfaction with Services and Outcomes

University of Minnesota

Institute on Community Integration

111 Pattee Hall

150 Pillsbury Drive Southeast

Minneapolis, MN 55455-0223

abery001@umn.edu

Principal Investigator: Brian Abery, PhD

Public Contact: 612/625-5592; Fax: 612/624-9344

Project Number: H133G010064

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 01 $149,834

Abstract: This project demonstrates both the direct and indirect effects of the AXIS approach to

health care on the lives of adults with physical disabilities. AXIS Healthcare, a joint venture of

Sister Kenny Institute and Courage, Inc., was formed to bring knowledge of physical disability to

the application of managed care. When dealing with health issues, people with physical disabilities

often find themselves battling not only illness but also the health care system itself; this project

works in partnership with persons with physical disabilities to coordinate a high-quality, cost effective network of specialized services spanning the continuum of care. Over the course of the project,

the health outcomes and satisfaction levels of individuals with physical disabilities taking part in this

program are monitored on a regular basis. The health outcomes and satisfaction of a comparison

group of individuals receiving care through traditional plans is also followed during this time. The

project is conducted with the understanding that programs similar to this one are not likely to be

established on a wide-scale basis until it can be empirically demonstrated that such programs have a

significant impact on the quality of life of the people they serve. The project is a collaborative effort

of The University of Minnesota, Courage Inc., AXIS Healthcare, and The Metropolitan Center for

Independent Living in Minneapolis.
Health and Function 2-81

Field-Initiated Projects (FIPs)

Missouri

Creating Permanent Behavioral Health Access for Rural Missourians

with TBI: Teleconferencing Application for Improved Services

University of Missouri/Columbia

DCO-46.00

One Hospital Drive

Columbia, MO 65212

schoppl@health.missouri.edu

http://www.telerehab.net

Principal Investigator: Laura Schopp, PhD

Public Contact: 573/882-2290; Fax: 573/884-4540

Project Number: H133G80033

Start Date: July 1, 1998

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $104,462; FY 99 $111,129; FY 00 $83,015; FY 01 (No-cost extension

through 9/30/01)

Abstract: This project offers one-on-one training of community mental health providers via teleconferencing sessions, and uses information learned from these sessions to create specialized training manuals, brochures, and workshops that synthesize issues regarding TBI behavioral health.

Community reentry after TBI carries a host of physical, emotional, social, and vocational challenges

for patients and families. In response to these challenges, behavioral health care is a central component in the rehabilitation process. Rural residents with TBI receive behavioral health services while

in acute rehabilitation programs, but often are unable to access follow-up services in their local rural

communities due to lack of coordination among inpatient and outpatient service providers. A permanent service structure of providers with competency in TBI adjustment and rehabilitation is desperately needed in rural areas. Services offered through this project are integrated among the adult

inpatient rehabilitation, the post-rehabilitation recovery, and the extended outpatient adaptation and

community reintegration periods of TBI adjustment. The project offers the educational tools to all

rural mental health providers across the state, and institutes a permanent rural TBI behavioral health

service structure.
2-82 Health and Function

Field-Initiated Projects (FIPs)

New Hampshire

Developing and Evaluating an Interactive Tool to Support Literacy

Learning in Adolescents with Severe Speech and Physical Impairments

University of New Hampshire

62 College Road

Morrill Hall

Durham, NH 03824

karene@cisunix.unh.edu

Principal Investigator: Karen Erickson, PhD; David Koppenhaver, PhD, 507/933-7444

Public Contact: Karen Erickson, PhD, 603/966-8828; Fax: 603/966-9942

Project Number: H133G990501

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 99 $124,755; FY 00 $124,755; FY 01 $124,988

Abstract: This project creates a Web-based tool, the Adolescent Literacy Learning Link (ALLLink), which provides adolescents with Severe Speech and Physical Impairments (SSPI) with an

innovative, literary learning environment. ALL-Link features age-appropriate reading and writing

activities that are grounded in inclusive models of comprehension and composition that apply

equally to people with and without disabilities. Projected outcomes of ALL-Link development

include: (1) successful development and implementation of an innovative and interactive literacylearning Web site for adolescents with SSPI and their teachers; (2) wide dissemination of the site

and parallel or related materials for classrooms without Internet access; and (3) project management

that efficiently provides target groups with increased access to and use of the Web site, related

materials, and project findings.
Health and Function 2-83

Field-Initiated Projects (FIPs)

New Hampshire

Project PATH (Promoting Access, Transition, and Health)

University of New Hampshire

Recreation Management and Policy

Hewitt Hall, Room 105

Durham, NH 03824-3585

jrsable@cisunix.unh.edu

http://www.unh.edu/rmp/rmpfiles/path.htm

Principal Investigator: Janet Sable, PhD, 603/862-3401

Public Contact: Jill Gravink, 603/862-0070; Fax: 603/862-2722

Project Number: H133G000150

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $149,996; FY 01 $149,996

Abstract: This project performs a randomized, controlled trial of Project PATH (Promoting Access,

Transition, and Health), a community-based health promotion wellness program for people with new

spinal cord injuries (SCIs). This health-promoting program involves a variety of interventions

including wellness education, an individualized fitness program, recreation skill development with

family and friends, community accessibility and advocacy, and peer advising. Working in conjunction with consumers, family, friends, and health and rehabilitation professionals, Project PATH is

designed to empower people with new SCIs to make prudent and appropriate use of recreation and

leisure resources and in that way, to reduce the incidence and intensity of some the most prevalent

and destructive secondary conditions of SCI: e.g., pressure sores, upper respiratory and urinary tract

infections, and depression. The project is a coordinated effort among the University of New Hampshire, Northeast Passage, a group of private proprietary rehabilitation hospitals, a private, nonprofit

hospital, university-based research, and the New England Regional SCI Center.
2-84 Health and Function

Field-Initiated Projects (FIPs)

New Hampshire

Catecholaminergic Modulation of Working Memory in Traumatic

Brain Injury: An fMRI Study of the Effects of D2 Dopaminergic and

Alpha-2 Adrenergic Agonistics

Dartmouth College

DHMC

Department of Psychiatry

1 Medical Center Drive

Lebanon, NH 03756-0001

thomas.w.mcallister@dartmouth.edu

http://synapse.hitchcock.org

Principal Investigator: Thomas W. McAllister, MD, 603/650-5824

Public Contact: Patricia Shaw, 603/650-7552; Fax: 603/650-5842

Project Number: H133G000136

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $150,000; FY 01 $150,000

Abstract: This project determines the role of dopaminergic (DA) and alpha-2 adrenergic (A2A)

mechanisms in the memory deficits experienced after a TBI. Many of the 1-2 million individuals

who sustain a mild-to-moderate TBI (MMTBI) each year suffer deficits in working memory in the

first several weeks after the injury. This project uses neurocognitive and fMRI measures in two

populations, one with normal WM (healthy controls), and one with low working memory capacity

(individuals with MMTBI) to: (1) characterize baseline working memory deficits in two domains

(verbal and spatial) within one month of MMTBI, and (2) test and compare the ability of DA and

A2A agonists to ameliorate working memory deficits in the two domains within one month of

MMTBI. The study predicts that relative to healthy controls, individuals with MMTBI have greater

deficits in verbal and spatial working memory, show greater improvement in working memory while

on D2 and A2A agonists, and that DA and A2A agonists result in different profiles and degrees of

working memory improvement. Furthermore, relative to controls, the fMRI of individuals with

MMTBI should show less activation associated with low and high working memory load conditions,

should normalize when acquired while on DA and A2A agonists, and should show selective prefrontal increased activation in response to increased working memory load.
Health and Function 2-85

Field-Initiated Projects (FIPs)

New York

Randomized Controlled Trial of Anti-Fatiguing Exercise to Improve

Function in Multiple Sclerosis Patients

State University of New York (SUNY) at Buffalo

Department of Occupational Therapy

515 Kimball Tower

Buffalo, NY 14214

nfisher@buffalo.edu

http://ot.buffalo.edu/rehabphys

Principal Investigator: Nadine M. Fisher, EdD

Public Contact: 716/829-3141, ext. 145; Fax: 716/829-3217

Project Number: H133G010132

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $150,000

Abstract: The goals of this study are: (1) to measure the changes in fatigue that result from a simulated workday and the next morning (incomplete recovery and residual fatigue); and (2) to study the

effectiveness of a 16-week program of anti-fatiguing resistance exercises. Multiple Sclerosis (MS) is

a demyelinating disease of the central nervous system; the most common symptom of MS is a

generalized sense of fatigue and reduced function. Few studies have considered the role of exercise

as a treatment for fatigue in people with MS. Subjects with MS are randomly assigned an exercise

group and receive an individualized progressive resistance training program of anti-fatiguing exercises to perform three days per week in the lab or at home.
2-86 Health and Function

Field-Initiated Projects (FIPs)

New York

Acupuncture as an Adjunctive Treatment in Stroke Rehabilitation

Beth Israel Medical Center

Center for Health and Healing

245 Fifth Avenue, 2nd Floor

New York, NY 10016

sshiflet@chpnet.org

http://www.healthandhealingny.org

Principal Investigator: Samuel C. Shiflett, PhD, 646/935-2244

Public Contact: Fax: 646/935-2273

Project Number: H133G000120

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $149,556; FY 00 $149,343; FY 01 $149,655

Abstract: This project designs and evaluates safe and efficacious ways acupuncture may be used to

benefit the functional recovery of survivors of stroke when used in addition to standard rehabilitation. The project directly addresses the medical, cognitive, and psychological sequelae of stroke, and

addresses which acupuncture points and model to use, when to start acupuncture, and the use of

electroacupuncture. The project also compares acupuncture with and without electrical stimulation

in stroke treatment. The aim of the study is to use rigorous research methods to determine: (1)

whether acupuncture has a beneficial effect on activities of daily living, motor and cognitive functioning, and quality of life in post-stroke survivors above and beyond standard rehabilitation; and (2)

if so, whether the length of time after stroke, before acupuncture is begun, affects the extent to

which acupuncture is effective, and optimal time to begin acupuncture therapy. In addition, it is

important to determine whether there is any benefit to initiating acupuncture treatment in stroke

survivors who are well past the subacute stage and who have apparently reached a plateau in their

recovery.
Health and Function 2-87

Field-Initiated Projects (FIPs)

New York

Community Reintegration and Quality of Life Following Traumatic

Brain Injury

Mount Sinai School of Medicine

One Gustave L. Levy Place, Box 1240

New York, NY 10029

marcel.dijkers@mssm.edu

Principal Investigator: Marcel Dijkers, PhD

Public Contact: 212/659-8587; Fax: 212/348-5901

Project Number: H133G990221

Start Date: July 1, 2000

Length: 12 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 00 $194,711; FY 01 $194,711

Abstract: This project increases understanding of community reintegration (CI) and quality of life

for people with TBI, and develops instruments that can be used in future research. CI refers to a

return to the mainstream of community life, and again becoming an active and contributing member

of one’s family and society. When people with TBI, their families, and professionals in rehabilitation discuss quality of life following TBI, they consider home and community roles and activities,

rather than the impairments or disabilities resulting from the injury. The best currently available

instrument, the Community Integration Questionnaire (CIQ) has serious limitations regarding the

measurement of all aspects of CI in a comprehensive, reliable, and sensitive manner. This project:

(1) produces a new version of the CIQ, and assesses its validity and reliability; (2) develops norms

for the new CIQ, for subgroups defined by age, gender, and racial/ethnic group; (3) creates a lifesatisfaction measure specific to people with TBI, and assesses its validity and reliability; (4) investigates the relationship between CI and subjective well-being; (5) describes the CI and quality of life

of TBI survivors, with a focus on severity of injury, age, gender, socioeconomic status, and racial

and ethnic group differences; and (6) disseminates the instruments and other results to people with

TBI and their families, professionals, policy-makers, and researchers.
2-88 Health and Function

Field-Initiated Projects (FIPs)

New York

Interventions to Improve Memory in Patients with Multiple Sclerosis

State University at Stony Brook

Health Science Center T12-020

Department of Neurology

Stony Brook, NY 11784-8121

Principal Investigator: Lauren B. Krupp, MD, 631/444-8119

Public Contact: Pat Melville, RN, 631/444-8164; Fax: 631/444-6325

Project Number: H133G990058

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 99 $147,304; FY 00 $147,816; FY 01 $148,329

Abstract: This project: (1) tests the efficacy of interventions, specifically targeting cognitive functioning, in patients with Multiple Sclerosis (MS); and (2) uses a novel outcome measurement that

may be more sensitive and ecologically valid than existing measurements. The experiments determine the efficacy of donepezil therapy and glucose administration for enhancing memory functioning, two interventions that are extremely well-tolerated and have been demonstrated to be effective

for improving memory and other aspects of cognitive functioning in several populations. Verbal

memory is the most common area of impairment in people with MS, and therefore a verbal memory

task is the primary outcome measure. Secondary outcome measures assessing other aspects of

cognitive function (i.e., nonverbal memory, conceptual thinking, processing speed) may also be

improved with intervention.
Health and Function 2-89

Field-Initiated Projects (FIPs)

New York

Development of Valid and Reliable Measures of Postural Stability

Helen Hayes Hospital

Route 9W

West Haverstraw, NY 10993

crthhh@mindspring.com

Principal Investigator: Stephen H. Sprigle, PhD

Public Contact: 845/786-4806; Fax: 845/786-4875

Project Number: H133G010024

Start Date: October 1, 2001

Length: 24 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $139,612

Abstract: This project validates four clinical measures of seated stability. An unresolved biomechanics problem for wheelchair users is maintaining functional trunk stability during upper extremity (UE) movement while achieving functional trunk mobility, when needed. Trunk stability is

provided by the wheelchair backrest, but this trunk support is in direct conflict with trunk mobility.

Back or trunk supports, which envelop the trunk, also restrict mobility. For wheelchair users, balancing sufficient trunk support with adequate trunk mobility has important functional and medical

consequences. Better understanding of the posture-function relationship is needed to permit seated

stability during activities of daily living while not hindering function by restricting trunk mobility.

Assessing postural stability should be integral to every seating evaluation; however, clinicians have

not been provided with valid measures of stability. This project tests three measures of stability

previously defined in the literature (functional reach, sitting balance, and reach area) and introduces

a fourth measure (bilateral reach). The predictive validity of all four measures is determined by

correlating the respective measurements to results of a series of functional tasks. Concurrent validity

is determined by correlating the results of the four clinical stability measures to each other. In

addition, the measures undergo reliability testing. The outcome of this project is clinical measures of

functional postural stability that have construct, concurrent, and predictive validity.
2-90 Health and Function

Field-Initiated Projects (FIPs)

Ohio

The Physiologic Basis of Functional Electrical Stimulation on Muscle

Atrophy in Acute Spinal Cord Injury

Ohio State University

Physical Medicine and Rehabilitation

Dodd Hall

480 West Ninth Street

Columbus, OH 43210

mysiw.1@osu.edu

Principal Investigator: W. Jerry Mysiw, MD

Public Contact: 614/293-3801; Fax: 614/293-3809

Project Number: H133G80100

Start Date: May 1, 1998

Length: 36 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 98 $125,000; FY 99 $125,000; FY 00 $125,000; FY 01 (No-cost extension

through 4/30/02)

Abstract: This study characterizes the changes in muscle mass, morphology, and histochemistry in

the first 6-7 months following acute SCI and explores the impact of early reinstitution of muscle

contraction on prevention of musculoskeletal atrophy. Muscle contractions are accomplished

through the application of functional electrical stimulation (FES) induced cycle ergometry, but this

study is not designed to develop FES technology. Rather it leads to a better understanding of the

effect of FES-induced isotonic muscle contraction with dynamic force on the musculoskeletal

changes known to occur after acute SCI. It also defines the dose-response relationship of FESinduced workloads on muscle mass and quality. Finally, the study begins to explore the mechanisms

for the observed changes through characterization of both systemic growth hormone and insulin-like

growth factors and local insulin-like growth factor changes over the six-month FES cycle ergometry

training program. A better understanding of the factors associated with the development of musculoskeletal atrophy occurring after acute spinal cord injury should lead to the development of better

rehabilitation and pharmacologic interventions directed at preventing these secondary impairments

of SCI.
Health and Function 2-91

Field-Initiated Projects (FIPs)

Oregon

Traumatic Brain Injury Rehabilitation: The Argentina Project

Oregon Health and Science University

School of Medicine

3181 Southwest Sam Jackson Park Road, L472

Portland, OR 97201-3098

chesnutr@ohsu.edu

http://www.ohsu.edu/som-ntrg

Principal Investigator: Randall Chesnut, MD

Public Contact: 503/494-3217; Fax: 503/494-7161

Project Number: H133G000154

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $149,905; FY 01 $149,645

Abstract: This project compares a cohort of 200 TBI patients from Argentina with a matched

sample of 200 cases from the National TBI Model Systems Database. The Neurotrauma Group of

the Argentina Society of Intensive Medicine (SATI) has instituted, at a group of trauma hospitals in

Argentina, a level of TBI acute care equal to that found in U.S. hospitals. However, TBI patients in

Argentina are discharged from this excellent acute care to no further formal treatment. This affords

an opportunity to test two groups of TBI survivors who have equivalent levels of acute care but

radically different postacute rehabilitation care. In the U.S. sample, all cases have had at least

postacute, inpatient rehabilitation. Some have had outpatient treatment as well. Patients in both

groups are case-matched for major predictive variables and are compared with respect to short- and

long-term mortality and morbidity, to investigate the influence of postacute care on outcome. Additionally, the influence of acute care management practices on outcome is evaluated and regression

analysis is used to establish the major predictive variables in this patient population. This project is

the first to address integrated TBI management under the conditions of significant resource limitations that exist in many areas of the world.
2-92 Health and Function

Field-Initiated Projects (FIPs)

Rhode Island

Shake It Up for Alcohol and Substance Use Reduction! Health

Promotion and Capacity Building for Persons with Traumatic Spinal

Cord Injuries

Brown University

Center for Alcohol and Addiction Studies

Box G-BH

Providence, RI 02912

pamela_block@brown.edu

Principal Investigator: Pamela Block, PhD

Public Contact: 401/444-1832; Fax: 401/444-1850

Project Number: H133G010094

Start Date: January 1, 2002

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $149,783

Abstract: Project Shake It Up provides individualized and self-directed supports in the areas of

physical activity, recreation, life skills, health promotion, and prevention, including alcohol and

substance use reduction, for people with SCI. The project attempts to motivate positive life changes

and build the capacities of individuals with SCI through the development of peer support networks

and self-advocacy. Project Shake It Up also builds the capacity of two local nonprofit organizations

controlled and staffed primarily by individuals with disabilities: Shake-A-Leg, Inc., whose focus is

recreation and rehabilitation, and PARI, a center for independent living. Project objectives include:

(1) developing a culturally competent training and recreation program, including a manual that

addresses independent living issues such as disability rights, self-advocacy, education, employment,

transportation, sexuality, alcohol and substance use, and health promotion; (2) implementing and

evaluating the Shake It Up program for health promotion, physical activity, and alcohol and substance use reduction; (3) establishing peer-support networks to provide long-term support for intervention participants; (4) increasing the capacity of Shake-A-Leg and PARI to promote alcohol and

substance use reduction through health promotion and empowerment; and (5) disseminating the

program nationwide by making the manual the Shake It Up model widely available.
Health and Function 2-93

Field-Initiated Projects (FIPs)

Texas

Health Promotion for Women Aging with Disability

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

Center for Research on Women with Disabilities

3440 Richmond Avenue, Suite B

Houston, TX 77046-3403

mnosek@bcm.tmc.edu; rhughes@bcm.tmc.edu

http://www.bcm.tmc.edu/crowd

Principal Investigator: Margaret A. Nosek, PhD

Public Contact: Rosemary Hughes, PhD, 713/960-0505; Fax: 713/961-3555

Project Number: H133G000226

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $149,940; FY 01 $149,998

Abstract: This project studies whether an intervention to improve self-efficacy and connectedness

improves health-promoting behaviors, which is related to improved physical and psychological

health. The research is based on two hypotheses: First, regarding the effectiveness of the intervention: women aging with physical disabilities who participate in a health promotion workshop intervention report higher levels of connectedness and self-efficacy in disability management after the

intervention and at a three-month follow-up, than women aging with physical disabilities who do not

participate in the intervention; and second, regarding predictors of health outcomes and the mediating effect of health promoting behaviors: connectedness in social and intimate relationships and selfefficacy in disability management significantly predict health promoting behaviors, which predict

physical and psychological health outcomes among women aging with physical disabilities, when

severity of disability and socioeconomic status are controlled.
2-94 Health and Function

Field-Initiated Projects (FIPs)

Texas

Assessment of Social Communication Abilities Following Traumatic

Brain Injury

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund

Houston, TX 77030-3498

strucm@tirr.tmc.edu

Principal Investigator: Margaret Struchen, PhD

Public Contact: 713/666-9550; Fax: 713/383-5695

Project Number: H133G010152

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 01 $149,657

Abstract: This project is guided by a model of social communication that includes cognitive components, awareness, the social environment, and receptive, processing, and expressive components.

Activities include: (1) adapting social skills measures used with other populations to test the receptive, processing, and expressive social communication abilities of persons with TBI and comparing

the results to those of a group of matched control subjects; (2) assessing the relationship between

social communication ability and functional outcome for persons with TBI and their family members; and (3) investigating the relationship between executive functioning abilities and social communication skills, in an effort to determine the cognitive functions underlying social skills impairment. The study is expected to result in a clinically feasible and meaningful way to assess social

communication abilities, which can be a guide to clinicians in developing empirically driven interventions to improve social skills.
Health and Function 2-95

Field-Initiated Projects (FIPs)

Wisconsin

Quantitative Study of Anterior and Posterior Walker Usage Dynamics

in Children with Cerebral Palsy

Marquette University

Orthopaedic and Rehabilitation Engineering Center

P.O. Box 1881

Milwaukee, WI 53201-1881

gerald.harris@marquette.edu

http://www.eng.mu.edu/rehab/orec.htm

Principal Investigator: Gerald F. Harris, PhD, PE, 414/288-0698

Public Contact: Deborah Epps, Project Administrator, 414/288-0696; Fax: 414/288-0713

Project Number: H133G010069

Start Date: November 1, 2001

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $149,995

Abstract: This study enables caregivers to make more informed decisions regarding proper walker

selection and follow-up by comparing the effects of anterior walkers versus the effects of posterior

walkers among ambulatory patients with spastic cerebral palsy. It also provides a quantitative foundation for improving future pediatric walker designs. A hallmark of this study is the acquisition of

functional performance data using standardized mobility test instruments. Each child entered into

the study is evaluated using the Gross Motor Function Measure (GMFM), in addition to the Pediatric Outcomes Data Collection Instrument (PODCI) at each stage of the study. The children also

undergo standardized spasticity testing with the Ashworth and Tardieu assessment scales. Final

statistical comparison/correlation of the quantitative (biomechanical) and functional assessment test

results is used to streamline the walker evaluation process and offer a more practical tool for assessment and walker prescription.

Technology for Access and Function

Rehabilitation, biomedical engineering, and assistive technology research has

produced results that have helped people with disabilities to achieve and maintain

maximum physical function, live in their own homes, attain gainful employment, and

participate in and contribute to society. NIDRR’s research addresses a broad range of

technology, including systems of public technology, such as telecommunications and

the built environment and orphan technology for individuals. The research program

also encourages universal design practices.

Contents

Rehabilitation Engineering Research Centers (RERCs) ...................................................................... 1

Disability and Rehabilitation Research Projects ................................................................................ 18

Field-Initiated Projects (FIPs) ............................................................................................................ 27

Small Business Innovative Research (SBIR), Phase I........................................................................ 56

Small Business Innovative Research (SBIR), Phase II ...................................................................... 57

Technology for Access and Function 3-1

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

California

Technologies for Children with Orthopedic Disabilities

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

12841 Dahlia Street, Building 306

Downey, CA 90242

info@ranchorep.org

http://www.ranchorep.org

Principal Investigator: Donald McNeal, PhD; Sam Landsberger, ScD

Public Contact: 562/401-7994 (V); Fax: 562/803-6117

Project Number: H133E003001

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $650,000; FY 01 $650,000

Abstract: The goal of this RERC is to improve the lives of children with orthopedic disabilities.

Activities include: (1) conducting research to advance the state of knowledge; (2) disseminating this

information to children and their parents, clinicians, and research investigators; (3) developing and

testing prototype devices that are useful and efficacious; (4) transferring prototypes that have proven

value to the marketplace; and (5) educating engineering students about the special needs of children

with orthopedic disabilities. The research and development program is focused on three of the most

important life activities of children: manipulation, mobility, and play and recreation. Three projects

address the manipulation needs of children with upper limb deficiencies; one documents current

fitting practices of children’s prosthetic clinics throughout North America, while a second develops

improved elbows and prehensors for young children. A third project adds a power assist to the

mobile arm support, a product developed and commercialized during the current grant period. The

mobility projects address the needs of children with cerebral palsy, spinal bifida, SCI, muscle disease, and other chronic conditions that affect the child’s ability to ambulate. The RERC develops

lightweight orthotic components, evaluates the effectiveness of functional electrical stimulation to

correct gait abnormalities in children with cerebral palsy, and determines the appropriate time to

provide children with wheeled mobility. The RERC program conducts clinical trials at Rancho Los

Amigos National Rehabilitation Center, Shriners Hospital LA, and Children’s Hospital LA. This

project participates in the NIDRR Scholars program, providing motivated undergraduates with

internship experience in disability research.
3-2 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

California

Smith-Kettlewell Rehabilitation Engineering Research Center

Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

rerc@ski.org

http://www.ski.org/Rehab

Principal Investigator: John A. Brabyn, PhD, 415/345-2110

Public Contact: 415/345-2000; Fax: 415/345-8455

Project Number: H133E001002

Start Date: August 1, 2000

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $650,000; FY 01 $650,000

Abstract: This project conducts research and development for persons who are blind or who have

visual impairments. For infants, the project explores a new objective means of identifying and

differentiating vision and cognitive impairments using visually-evoked potentials (VEPs), facilitating the design of optimal rehabilitation plans for each child. For individuals who have co-existing

disabilities (in addition to blindness or a visual impairment), the project explores new solutions for

wheelchair travel. It also investigates independent travel technology for those with combined visual

and cognitive impairments. For the older age group, the project explores practical tools allowing lay

personnel to screen and assess visual impairments affecting problems unique to this age group, so

they can be identified and referred to appropriate clinical or rehabilitation specialists quickly. For

consumers who are deaf-blind, the project develops a new generation of communication devices,

greatly expanding the functions performed by existing products. It also explores novel approaches to

graphics access by persons who are blind or who are deaf-blind, using virtual reality, sonification,

and force feedback technologies. An innovative program of vocational and daily living technology

development includes intensive interaction with service providers and applications of computer

vision.
Technology for Access and Function 3-3

Rehabilitation Engineering Research Centers (RERCs)

District of Columbia

Rehabilitation Engineering Research Center on Hearing Enhancement

Gallaudet University

Division of Audiology and Speech-Language Pathology

Kendall Greene

800 Florida Avenue Northeast

Washington, DC 20002

info@hearingresearch.org

http://www.hearingresearch.org

Principal Investigator: Matthew H. Bakke, PhD, 202/651-5335

Public Contact: Lois O’Neil, Dissemination Coordinator, 718/350-3203 (V/TTY); Fax: 718/899-

3433

Project Number: H133E010107

Start Date: August 1, 1998

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $900,000

Abstract: This RERC develops and evaluates technology to accommodate the needs of people with

hearing loss, and disseminates related information in a form that is understandable to consumers,

service providers, employers, and community leaders. These goals are accomplished by: (1) developing and evaluating improved, cost-effective technological aids for each of the target populations

identified; (2) developing and evaluating instrumentation for detecting hearing loss at an early age;

(3) providing improved access to modern telecommunications; (4) developing and evaluating specialized technology for community, home, and work environments; and (5) pursuing an active

program of dissemination and training to ensure effective utilization of AT. This project participates

in the NIDRR Scholars program, providing motivated undergraduates with internship experience in

disability research.
3-4 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

District of Columbia

Rehabilitation Engineering Research Center on Telerehabilitation

MedStar Research Institute

National Rehabilitation Hospital

102 Irving Street Northwest

Washington, DC 20010

michael.j.rosen@medstar.net

http://www.telerehab-nrh.org

Principal Investigator: Michael Rosen, PhD

Public Contact: Donal Lauderdale, 202/877-1554; Fax: 202/723-0628

Project Number: H133E990007

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $890,000; FY 99 $950,000; FY 00 $950,000; FY 01 $950,000

Other Funding: FY 01 $1,040,000 (Assistive Technology Research Center, U.S. Army Medical and

Material Command)

Abstract: This center conducts research on various models of delivering rehabilitation services at a

distance: telerehabilitation. Its development activities focus on exploiting promising technology to

benefit people with disabilities. Research projects encompass the areas of: Telehomecare—

telesupport to caregivers of stroke victims; Telecoaching—remote jobsite coaching of persons with

mental disabilities; Telehealth pain management—psychological intervention at a distance; and

Behavioral Virtual Reality—investigation and training of social and attending behaviors using virtual

environment technology. Further research efforts explore integrating telerehabilitation into today’s

health care delivery system and finding effective means for extending rehabilitation services to the

peoples of the Pacific Rim. The center is also engaged in development projects focusing on

Telemonitoring, passive sensing of functional performance and health parameters using unobtrusive

instrumentation; HomeTelerehab, interactive systems for remote delivery of therapy, assessment,

teaching, and demonstration at home; and Teleplay, therapeutic play, including embedded

teleassessment for children with disabilities. The Center establishes the following National Resource

activities: (1) a Home Care and Telerehabilitation Technology Center; (2) a Home Care and

Telerehab Education/Training Center; and (3) a Virtual Library on Telerehabilitation that serves as

the focal point for information dissemination on telerehab-germane practice, policy, and technology.

The work of the Center spans three institutions: The National Rehabilitation Hospital, The Catholic

University of America, and Sister Kenney Rehabilitation Services.
Technology for Access and Function 3-5

Rehabilitation Engineering Research Centers (RERCs)

Florida

Rehabilitation Engineering Research Center on Technology for

Successful Aging

University of Florida

596 Museum Road

Gainesville, FL 32610

wmann@hp.ufl.edu

Principal Investigator: William C. Mann, PhD, 352/392-2617

Public Contact: Susan L. Boldt, Information Coordinator, 800/628-2281 (V/TTY)

Project Number: H133E010106

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 01 $900,000

Abstract: The RERC-Tech-Aging conducts research, development, education, and information

dissemination work on technology for successful aging. Projects of the RERC focus on the closely

related areas of communications, home monitoring, and “smart” technologies. The technology

driving the focus for this RERC is developing rapidly and requires an understanding of current and

emerging technology areas, including wireless technology, computers, sensors, user interfaces,

control devices, and networking. Successful integration of this technology into products and systems

for older persons requires an understanding of their complex health, independence, and quality-oflife issues. The RERC-Tech-Aging tests currently available home monitoring products and demonstrates their effectiveness in relation to independence, quality of life, and health related costs. The

RERC-Tech-Aging also identifies needs and barriers to home monitoring and communication technology, and addresses needs of special populations including rural-living, elders, and people aging

with disability. The RERC-Tech-Aging brings together national expertise to meet this challenge,

including major universities, industry leaders working in this area, major aging or aging-related

organizations, major federal agencies that relate to funding or services in this area, other NIDRRfunded RERCs and RRTCs, and service-related organizations that assist in identifying study participants.
3-6 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Mobile Wireless

Technologies for Persons with Disabilities

Georgia Center for Advanced Telecommunications Technology (GCATT)

Georgia Institute of Technology

250 - 14th Street

Atlanta, GA 30324

helena.mitchell@gcatt.gatech.edu

Principal Investigator: Helena Mitchell, PhD; Michael Jones, MD, Shepherd Center; John Peifer,

Georgia Tech

Public Contact: 404/894-0058 (Mitchell); 404/352-2020 (Jones); 404/894-7028 (Peifer); Fax: 404/

894-1445

Project Number: H133E010804

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $1,000,000

Abstract: This project develops appropriate and effective applications of wireless technologies that

enhance the independence of people with disabilities. With an overall goal of promoting independence and autonomy of people with disabilities, the RERC has two primary aims: (1) ensure equitable access to mobile wireless products and services by people with disabilities of all ages and

abilities; and (2) investigate promising applications of mobile wireless technologies in support of

employment, independent living, and community integration of people with disabilities. To accomplish these aims, the RERC is organized into three main sections: The Research Section investigates

needs, policies, and promising applications of mobile wireless technologies to promote independence. Research initiatives include assessment of user needs, evaluation of emerging technologies,

and policy initiatives that influence the practices, policies, and regulations that affect accessibility of

wireless technologies. The Development Section includes projects that address universal access,

investigation of new applications of wireless technologies, and innovative design solutions to support independent living of people with disabilities. The Training and Dissemination Section promotes the synthesis of new knowledge into practice.
Technology for Access and Function 3-7

Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Prosthetics and

Orthotics

Northwestern University

Rehabilitation Engineering Research Program and Prosthetics Research Laboratory

345 East Superior Street, Room 1441

Chicago, IL 60611

reiu@northwestern.edu; d-childress@northwestern.edu

http://www.repoc.northwestern.edu

Principal Investigator: Dudley S. Childress, PhD, 312/238-6500

Public Contact: Resource Unit Help Line, 312/238-6524 (V); 312/238-6530 (TTY); Fax: 312/238-

6510

Project Number: H133E980023

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $900,000; FY 99 $900,000; FY 00 $900,000; FY 01 $900,000

Abstract: This program studies human performance as assisted by prosthetic and orthotic systems,

with the aim of engineering improved prostheses and orthoses through deeper scientific understanding of their function. Research and development activities include: (1) development of automated

alignment methods for prostheses and orthoses, based on characterization of foot rocker shape during

walking; (2) investigation of shock absorption properties of the human locomotor system; (3) mechanical considerations for improved crutch ambulation; (4) studies of standard human walking; (5)

determination of prosthetic foot roll-over shapes and other characterizations; (6) examination of the

effects of shoes on kinematic and kinetic parameters of gait; (7) development of a portable, real-time,

3-D gait evaluation system (3-D Direct Ultrasound Ranging System) that is able to provide estimates

of walking quality (outcomes) using a simple technology; (8) development and delivery of validated

data-gathering instruments and a prototype database for collection, storage, and processing shortand long-term information concerning outcomes of prosthetic and orthotic (P&O) fittings; (9) development of a computer-based visualization aid that displays prosthetic arms on the human body

before the arms are fabricated, to assist with decision-making and fitting; (10) study of factors

affecting reach when using a trans-humeral prosthesis; (11) development of humeral rotation mechanisms, particularly for persons with bilateral trans-humeral limb loss; (12) advancement of the

design of several P&O components and systems to stages of technology transfer and utilization; (13)

collaboration with the RERC on Land Mines and others engaged in related research; and (14) publication of work in scholarly journals; presentations at conferences; and interaction with consumers,

clinicians, engineers, scientists, and the general public through a quarterly newsletter, the telephone,

the Internet, and through personal meetings.
3-8 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center: Improved Technology

Access for Land Mine Survivors

Physicians Against Land Mines

Center for International Rehabilitation

351 East Huron, Second Floor Annex

Chicago, IL 60611

h-casanova@nwu.edu

http://www.banmines.org

Principal Investigator: William Kennedy Smith, MD; Dudley S. Childress, PhD

Public Contact: Hector Cassanova, Project Coordinator, 312/926-0030; Fax: 312/926-7662

Project Number: H133E980031

Start Date: November 1, 1998

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 98 $850,000; FY 99 $850,000; FY 00 $850,000; FY 01 $850,000

Abstract: This RERC is active in research, development, and demonstration; consumer surveys;

education and training; utilization activities; technical assistance; and dissemination relating to

improved technology access for land mine survivors. To accomplish these activities, the project: (1)

maintains a database of rehabilitation service providers and assessments of current prosthetic technologies; (2) develops or adapts technical advances in the design, production, and delivery of appropriate assistive devices; (3) designs and disseminates education, training, management, and outcome

programs; (4) acts as a clearinghouse, providing researchers, educators, administrators, and funders

access to resources that have been developed to facilitate service delivery to amputees in the United

States and other countries; (5) disseminates information through an international newsletter and

international journals, telecommunications, presentations at international meetings, training programs, consultations, open discussions, and other types of communication; and (6) develops and

disseminates specific programs and products that address the needs of amputees and service providers in low-income countries where the vast majority of land mine survivors live. The RERC also

establishes an Advisory Council that includes consumers and practitioners.
Technology for Access and Function 3-9

Rehabilitation Engineering Research Centers (RERCs)

Michigan

Rehabilitation Engineering Research Center on Ergonomic Solutions

for Employment

University of Michigan

Center for Ergonomics

1205 Beal Avenue

Ann Arbor, MI 48109-1217

umrerc@umich.edu

http://umrerc.engin.umich.edu

Principal Investigator: Thomas J. Armstrong, PhD, 734/763-3742

Public Contact: Sheryl S. Ulin, PhD, 734/615-2683; Fax: 734/764-3451

Project Number: H133E980007

Start Date: August 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000; FY 01 $800,000

Abstract: This Center combines ergonomic interventions, work and worksite modifications,

assistive technologies, and medical interventions to facilitate placement of workers with disabilities,

and helps prevent development of subsequent musculoskeletal illnesses and injuries. The Model

System establishes a database to include information on a broad range of interventions and case

examples as well as procedures for assessing workers, analyzing jobs, identifying accommodation

needs, and selecting interventions, including ergonomic technologies. The comprehensive approach

involving rehabilitation medicine and ergonomics culminates in a Web-based Model System that can

be used by rehabilitation professionals, employers, consumers, and organizations.
3-10 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering Research Center on Technology Transfer

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

515 Kimball Tower

Buffalo, NY 14214

jimleahy@acsu.buffalo.edu

http://cat.buffalo.edu

Principal Investigator: Joseph Lane

Public Contact: James Leahy, 716/829-3141 (V); 800/628-2281 (TTY); Fax: 716/829-3217

Project Number: H133E980024

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $900,000; FY 99 $900,000; FY 00 $900,000; FY 01 $900,000

Abstract: This Center improves the quality of life for people with disabilities by: advancing the

methods of technology transfer through research, transferring technologies into products through

development, and facilitating the commercialization of new and improved assistive devices. These

three outcomes are accomplished through collaborations with academic, industrial, consumer, and

government stakeholders. The Center, a partnership of technical, marketing, and consumer expertise

and networks: (1) conducts research on the technology transfer process as it is applied to the field of

assistive technology, and develops, validates, and disseminates comprehensive models of technology

transfer; (2) applies the research results by implementing the technology transfer process through a

development program; (3) identifies and transfers breakthrough technologies to industry through a

demand-pull model, transferring at least three technologies annually; (4) identifies and transfers

useful new inventions to the marketplace through a supply-pull model, transferring three to five

products annually; (5) delivers training, dissemination, and technical assistance programs to stakeholders in the field; and (6) develops an online technology transfer course as part of the University at

Buffalo’s distance education initiative. The dissemination program includes a state-of-the-practice

conference and the development of a technology transfer program to be offered for presentation in

year three. The Center functions as an intermediary and a catalyst, improving the process while

expanding the network of stakeholders involved with the field. The end result: new and improved AT

products available in the marketplace that benefit professional service providers, family members,

and people with disabilities.
Technology for Access and Function 3-11

Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering and Research Center (RERC) on Universal

Design and the Built Environment at Buffalo

State University of New York (SUNY) at Buffalo

Department of Architecture

378 Hayes Hall

Buffalo, NY 14214

rercud@ap.buffalo.edu

http://www.ap.buffalo.edu/~idea

http://www.ap.buffalo.edu/~rercud

Principal Investigator: Edward Steinfeld, ArchD, 716/829-3485, ext. 336

Public Contact: Assistant Director, 716/829-3485, ext. 335; Fax: 716/829-3861

Project Number: H133E990005

Start Date: November 1, 1999

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $599,965; FY 00 $599,952; FY 01 $599,932

Abstract: The RERC on Universal Design and the Built Environment promotes the adoption of

universal design. Research programs include the Prototype Anthropometric Database Project, a

research database on anthropometrics of wheelchair users for application to ergonomic design, and

The Buildings in Use Project that demonstrates the benefits of universal design by conducting postoccupancy evaluations of buildings currently in use. Product development efforts include development of prototypes for innovative universally designed products, evaluation and testing of these

prototypes, and commercialization assistance to facilitate bringing each prototype to market. The

Visitability Initiative conducts training and action research in eight cities to develop visitability

demonstration projects, and is a collaboration with Concrete Change, a consumer advocacy organization focusing on making housing “visitable” by people with disabilities. The RERC’s activities also

include universal design education and technical assistance, along with publication and dissemination of universal design resources.
3-12 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center on Communication

Enhancement

Duke University

Department of Surgery

Division of Speech Pathology and Audiology

Duke University Medical Center, Box 3888

Durham, NC 27710

aac-rerc@mc.duke.edu

http://www.aac-rerc.com

Principal Investigator: Frank DeRuyter, PhD, 919/684-6271

Public Contact: Kevin Caves, BSME, ATP, 919/681-9983; Fax: 919/681-9984

Project Number: H133E980026

Start Date: November 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $899,996; FY 99 $899,990; FY 00 $900,000; FY 01 $900,000

Abstract: This project uses innovative communications technologies to benefit researchers, engineers, rehabilitation service providers, developers, and users of alternative and augmentative communication (AAC) technologies. The project: (1) investigates attitudinal barriers toward technology

use by elderly people with communication disorders, their listeners, and service providers; (2)

studies the organizational strategies of adult AAC users to determine if preferences are predictive of

performance using AAC; (3) studies how to improve AAC technologies for young children with

significant communication disorders by evaluating learning demands and functional performance

(also involves development of design specifications); (4) evaluates and enhances communication rate

efficiency and effectiveness through the development of procedures and software technology that

simulates and measures the performance of AAC technologies; (5) identifies barriers to employment,

describes strategies to overcome them, documents design specifications for AAC technologies, and

describes action plans to achieve successful employment outcomes; (6) increases employment

opportunities for graduates of an employment and AAC program; and (7) develops a coordinated

program that monitors and seeks out technology developments in both commercial form and

prerelease development stages that affect the engineering and clinical AAC field.
Technology for Access and Function 3-13

Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center (RERC) on Universal

Design and the Built Environment at NCSU

North Carolina State University

Center for Universal Design

219 Oberlin Road

Campus Box 8613

Raleigh, NC 27695-8613

cud@ncsu.edu

http://www.design.ncsu.edu/cud

Principal Investigator: Molly Story, 303/399-8133

Public Contact: Sallie Haile, 800/647-6777 (V/TTY, information requests only); 919/515-8547 (V/

TTY); Fax: 919/515-3023

Project Number: H133E990002

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $399,989; FY 00 $399,967; FY 01 $399,955

Abstract: This program improves the accessibility and usability of the built environment and advances the field of universal design. To achieve its goals, the RERC conducts an integrated program

of research and development programs, training programs, and a comprehensive program of information and referral and technical assistance. The major Center research project is developing

multidisciplinary environmental assessment tools to evaluate the complex and dynamic relationship

between the individual and the environment. Another research project is documenting a set of case

studies of successful universal design implementations. Development projects include creating

model architectural plans and products that demonstrate maximum universal usability. Training

activities include postsecondary and continuing education and supporting the biennial international

conference on universal design.
3-14 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Wheeled Mobility

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

Forbes Tower, Suite 5044

Pittsburgh, PA 15260

dbrienza@pitt.edu

http://www.rerc.pitt.edu

Principal Investigator: David M. Brienza, PhD; Clifford Brubaker, PhD

Public Contact: 412/383-6591 (V); 412/383-6598 (TTY); Fax: 412/383-6597

Project Number: H133E990001

Start Date: January 1, 1999

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $900,000; FY 00 $900,000; FY 01 $900,000

Abstract: The RERC on Wheeled Mobility investigates the use of dynamic seating for reducing

spasticity and enhancing seating comfort; investigates the biomechanical characteristics of soft tissue

related to the risk of developing pressure ulcers and the relationship between pressure measurements

and pressure ulcer incidence; develops and validates the use of outcomes measures for seating and

mobility intervention; and investigates the use of the World Wide Web as a seating decision support

tool for consumers. This project also develops and evaluates a comparative data source for use in

decision support of wheelchair selection; an interface for integrating external devices with powered

wheelchairs; wheelchair seating standards; standardized postural measures; injury prevention wheelchair technologies; and enhanced controls for powered wheelchairs.
Technology for Access and Function 3-15

Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Wheelchair

Transportation Safety

University of Pittsburgh

School of Rehabilitation and Health Sciences

Department of Rehabilitation Science and Technology

Forbes Tower, Suite 5044

Pittsburgh, PA 15260

ginaber@pitt.edu

Principal Investigator: Gina E. Bertocci, PhD

Public Contact: 412/383-6595; Fax: 412/383-6596

Project Number: H133E010302

Start Date: November 1, 2001

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $868,840

Abstract: This program improves the safety of wheelchair users who remain seated in their wheelchair while using public and private motor-vehicle transportation. RERC tasks investigate and

develop new wheelchair tiedown and occupant restraint system technologies, including wheelchairintegrated restraints and universal docking concepts, that enable wheelchair users to secure and

release their wheelchair independently and quickly, and use an effective occupant restraint system

without the need for assistance. The RERC also researches the issues and factors involved in providing improved occupant protection to wheelchair-seated drivers and passengers in rear and side

impacts, and uses a multifaceted approach, including in-depth investigations of real-world accidents,

to investigate the incidence, severity, and causes of injuries to wheelchair-seated occupants in different sizes of vehicles and in different types of crashes and non-impact incidents experienced during

vehicle motion. In particular, this RERC explores the need for, and suitability of, using different

levels of wheelchair securement and occupant restraint in larger public transit vehicles, with the goal

of recommending and developing equipment and systems that provide for a safe ride using equipment and procedures that are more compatible with the operational needs of the transit environment.

The program includes a comprehensive research and development effort that involves consumers,

manufacturers, students, clinicians, transport providers, and rehabilitation technology experts. The

RERC also has active programs of information dissemination, training, and technology transfer

using personnel, mechanisms, and facilities that have been previously established at the University

of Pittsburgh/University of Michigan.
3-16 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Information

Technology Access

University of Wisconsin/Madison

Trace Research and Development Center

5901 Research Park Boulevard

Madison, WI 53719-1252

info@trace.wisc.edu

http://trace.wisc.edu/itrerc

Principal Investigator: Gregg C. Vanderheiden, PhD, 608/263-5788

Public Contact: Nancy Gores, 608/262-2309 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E980008

Start Date: June 12, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $1,350,000; FY 99 $1,350,000; FY 00 $1,350,000; FY 01 $1,350,000

Abstract: This RERC improves access by individuals with all types, degrees, and combinations of

disabilities to a wide range of technologies, including computers, ATMs, kiosks, point-of-sale devices and smartcards, home and pocket information appliances, Internet technologies (XML, XSL,

CSS, SMIL, etc.), intranets, and 3-D and immersive environments. As one component in a larger

system of consumers, researchers, industry, and policy and public agencies, the Trace Center’s

program is designed to work within the existing structure, supporting other components and coordinating its efforts to address the functioning of the whole. The program identifies strategies that can

be used by industry to broaden the user base for their standard products, so individuals with as broad

a range of abilities as possible are able to use standard products directly. Further, the Center targets

specific compatibility and interconnection standards work to ensure that people who cannot use

products directly are able to operate them using assistive technologies. The Center focuses on the use

of targeted projects and collaboration, both national and international, to carry out the research,

development, information dissemination, training, and standard-setting activities required. The

approach is intended to be flexible, forward-looking, and broad in scope, yet focused on key access

issues as defined by its consumer constituency and its research programs.
Technology for Access and Function 3-17

Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Telecommunication

Access

University of Wisconsin/Madison

Trace Center, College of Engineering

5901 Research Park Boulevard, Suite 200

Madison, WI 53719-1252

info@trace.wisc.edu

http://trace.wisc.edu/telrerc

Principal Investigator: Gregg C. Vanderheiden, PhD (Trace); Judy Harkins, PhD (Gallaudet

University), 608/263-5788 (Trace); 202/561-5257 (Gallaudet)

Public Contact: Nancy Gores, 608/263-2309 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E990006

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $675,000; FY 00 $675,000; FY 01 $675,000

Abstract: The focus of this RERC is to identify telecommunication access barriers in current and

future technologies, work with others in the field to identify solution strategies, test them, implement

any necessary standards, and assist industry in transferring the ideas into their commercial products.

Activities of the Center include research, applied research and development, training and technical

assistance, and dissemination and utilization. Technologies being addressed include: (1) customer

premises equipment (CPE) of all types, including phones, video phones, pagers, messaging systems,

etc.; (2) telecommunication systems and services, including voice mail, interactive voice response

systems, etc.; (3) network topologies; (4) telecommunications standards; and (5) next-generation

multimedia telecommunication systems, including telecollaboration, virtual meetings, etc. The

primary focus is on making these systems directly usable by people with all types and degrees of

disability. A secondary focus is ensuring compatibility with assistive technologies such as TTYs,

assistive listening devices, alternative input devices, and devices with alternative displays.
3-18 Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Wayfinding Technologies for People with Visual Impairments:

Research and Development of an Integrated Platform

Sendero Group, LLC

1118 Maple Lane

Davis, CA 95616-1723

mikemay@senderogroup.com

http://www.senderogroup.com

Principal Investigator: Michael May

Public Contact: 530/757-6800; Fax: 707/598-4896

Project Number: H133A011903

Start Date: December 1, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $449,065

Abstract: This project develops a hardware and software platform that provides accessible location

and navigation information for people who are blind or who have visual impairments who are traveling in indoor and outdoor environments. Development activities focus on creating an effective user

interface and developing a common hardware and software platform that exploits the Global Positioning System (GPS) and other current and emerging navigation technologies. Specific activities

include integrating navigation aids that have been developed by Sendero LLC (GPS Talk) and by the

University of California-Santa Barbara/CMU group headed by Jack Loomis (the Personal Guidance

System, or PGS). The platform also accesses information from other devices, including TalkingSigns® type devices, intersection signalization controls, an indoor digital sign system to be developed during this project at the University of Minnesota, a spatialized tactile stimulator to be developed at UCSB, a dead reckoning pedestrian navigation system, and cellular phones with GPS

capabilities. For navigating in outdoor environments, a system could aid pedestrians who are blind at

complex intersections and roundabouts, and devices could assess and prevent veer.
Technology for Access and Function 3-19

Disability and Rehabilitation Research Projects

California

Assistive Technology Research Network on Technology for

Independence

California Foundation for Independent Living Centers (CFILC)

660 J Street, Suite 270

Sacramento, CA 95814

http://www.cfilc.org

http://www.atnet.org

Principal Investigator: Tanas Doe, PhD

Public Contact: Patricia Yeager, Project Coordinator, 916/325-1690; Fax: 916/325-1699

Project Number: H133A010702

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 01 $299,910

Abstract: This project increases the capacity of the independent living community to collect research data on access and use of AT to improve the lives of people with disabilities. to work with its

members and stakeholders. Using a participatory research approach, the California Foundation for

Independent Living Centers (CFILC) plans to use an ecological model to develop cumulative research data on the use of and access to AT by people with disabilities. University researchers train

participants in research methods and assist with data collection and analysis. Community advocates

conduct focus groups, surveys, and action research in their respective regions. Advocates also train

university students in community-based research related to AT and independent living.
3-20 Technology for Access and Function

Disability and Rehabilitation Research Projects

Georgia

Information Technology Technical Assistance and Training Center

(ITTATC)

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street

Atlanta, GA 30332-0156

ittac@arch.gatech.edu

http://www.ittatc.org

Principal Investigator: Joseph Koncelik, 404/894-4960

Public Contact: 866/948-8282; Fax: 404/894-9320

Project Number: H133A000405

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $1,500,000; FY 01 $1,500,000

Abstract: This project provides information, training, and technical assistance to support the implementation of Section 508 of the Rehabilitation Act and Section 255 of the Telecommunications Act.

The Center promotes the benefits of universal design to technology manufacturers, product designers

and engineers, technical writers, marketers, and purchasers of IT. It also works closely with federal

regulatory agencies including the Federal Communications Commission, the Access Board, the

Department of Justice, and the General Services Administration to advance understanding and

knowledge utilization of approaches to the requirements of Sections 255 and 508 through training

and technical assistance activities. The Information Technology Technical Assistance and Training

Center is a collaborative project of the Center for Assistive Technology and Environmental Access,

World Institute on Disability, Community Options, Inc., Information Technology Association of

America, Trace Center at the University of Wisconsin Madison, NIDRR’s Disability and Business

Technical Assistance Centers, and ITTATC’s National Advisory Council.
Technology for Access and Function 3-21

Disability and Rehabilitation Research Projects

Kansas

Mental Retardation and Technology Disability and Rehabilitation

Research Project

University of Kansas

Beach Center on Disability

1200 Sunnyside Avenue, Room 3136

Lawrence, KS 66045-7555

wehmeyer@ku.edu

Principal Investigator: Michael Wehmeyer, PhD

Public Contact: 785/864-0723; Fax: 785/864-3458

Project Number: H133A010602

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 01 $299,871

Abstract: This project increases the ability of people with mental retardation and other cognitive

disabilities to use electronic and information technology as well as assistive and universally designed

technologies. It examines current technology design features, gaps that exist in its utilization, what

state-of-the-art technology exists or is emerging that would provide benefits, and what modifications

to existing or new technology would enhance this population’s inclusion in the community and

integration into the workplace. The project includes two national consensus conferences, in conjunction with the national conferences held annually or semi-annually by American Association on

Mental Retardation (AAMR) and The Arc of the United States, to address these issues. Additional

activities include reviewing and synthesizing the extant literature, canvasing existing disabilityrelated technology advocates and associations (including Tech Act Centers and related entities), and

conducting focused interviews of key stakeholders. The project also includes a Special Interest

Group on Technology and Mental Retardation through the AAMR, which allows stakeholders in the

field the opportunity to participate in all project activities. A national expert advisory panel consisting of representatives from national disability organizations, manufacturers, people with mental

retardation, experts in the field, and parent/family representatives are involved in all consensusbuilding activities and advise the project through its duration. The project is a collaboration of the

Beach Center on Disability at the University of Kansas, The Arc, the AAMR, AbleLink Technologies, the Coleman Institute on Cognitive Disabilities, the Self-Advocate Coalition of Kansas and the

Joseph P. Kennedy Jr. Foundation.
3-22 Technology for Access and Function

Disability and Rehabilitation Research Projects

Missouri

Assistive Technology in the Community

Washington University

School of Medicine

Occupational Therapy

4444 Forest Park Avenue

St. Louis, MO 63108

grayda@msnotes.wustl.edu

Principal Investigator: David B. Gray, PhD, 314/286-1658

Public Contact: Kerri Morgan, 314/286-1659; Fax: 314/286-1601

Project Number: H133A010701

Start Date: January 1, 2002

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $300,000

Abstract: This project promotes AT as a means of increasing participation in major life activities by

people with disabilities. Project activities include: (1) assessing the use, disuse, injury, and effects

that AT has on the participation of people with disabilities in major life activities, to determine what

technologies are of the most benefit in community settings; (2) implementing a community-based AT

program in collaboration with Paraquad, a nationally recognized Center for Independent Living, to

improve the satisfaction of participants in their self-chosen life activities; (3) educating consumers,

independent living staff, educators, health care professionals, AT industry leaders, and public policymakers about the influence AT has on major life activities.
Technology for Access and Function 3-23

Disability and Rehabilitation Research Projects

North Carolina

Advancing Assistive Technology Outcomes

Duke University

Division of Speech Pathology and Audiology

DUMC-3887

Durham, NC 27710

frank.deruyter@duke.edu

Principal Investigator: Frank DeRuyter, PhD

Public Contact: 919/681-9983 (V); 919/684-6626 (TTY); Fax: 919/681-9984

Project Number: H133A010401

Start Date: November 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $449,787

Abstract: This program advances the field of AT outcomes measurement. Research activities include: (1) performing a critical analysis of existing approaches to measurement and further developing instruments that are promising; (2) identifying unmet needs and assessing barriers to AT outcomes measurement; and (3) undertaking a prospective longitudinal study of factors associated with

assistive device adoption, use, and discontinuance. Development activities include: (a) developing

and evaluating independent electronic data collection or computer-assisted systems for the capture,

analysis, and interpretation of AT outcomes information; (b) developing and evaluating improved

methods and systems for communication of outcomes information among significant stakeholders;

(c) automatic log file performance data-capturing for AT outcomes assessment; and (d) development

of new or improved AT outcomes tools.
3-24 Technology for Access and Function

Disability and Rehabilitation Research Projects

Oregon

Think and Link: Email for Individuals with Cognitive Disabilities

Western Oregon University

Teaching Research Division

99 West Tenth Avenue, Suite 370

Eugene, OR 97401

mckay@oregon.uoregon.edu

Principal Investigator: McKay Moore Sohlberg, PhD

Public Contact: 541/346-2586; Fax: 541/346-0599

Project Number: H133A010610

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $300,000

Abstract: This project improves the access and use of electronic mail by individuals with cognitive

disabilities resulting from brain injury. The Internet’s email component has created an unparalleled

communication network linking people for commercial and social purposes. It holds tremendous

potential for lessening social isolation, one of the most pervasive and devastating consequences of

brain injury. However, virtually nothing is known about what modifications are required to provide

successful access to this technology to people with cognitive disabilities that result from brain injury.

In addition, the diverse cognitive impairments confronting people with brain injury render an enormous challenge to the development of assistive devices that could improve accessibility to email.

Activities of this project include: (1) identifying the wide range of issues critical for long-term,

effective use of email by people with cognitive disabilities. (2) developing a diagnostic protocol, a

cyber-evaluation of the potential of a person with cognitive disabilities to use electronic communication; (3) developing a software toolkit that allows caregivers, support persons, and professionals to

fit an individual user with a customized email system; (4) creating a virtual clinic that supports

widespread dissemination and use of these materials by cognitive rehabilitation professionals. An

open-source software site on the web allows other worldwide researchers to use the new tools and

contribute tools of their own.
Technology for Access and Function 3-25

Disability and Rehabilitation Research Projects

Virginia

Assistive Technology and Cognitive Disabilities

Brain Injury Association, Inc.

105 North Alfred Street

Alexandria, VA 22314

kflippo@biausa.org

http://www.biausa.org

Principal Investigator: Karen Flippo

Public Contact: 703/236-6000, ext. 108; Fax: 703/236-6001

Project Number: H133A010607

Start Date: November 1, 2001

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $299,982

Abstract: This project assesses the use of several types of information technologies by children and

adults with cognitive disabilities, specifically individuals with TBI and mental retardation. Outcomes

include: (1) a catalog of existing portable Devices for Memory and Organization (DMO), (2) a list of

features that enhance or inhibit use of these general purpose and special-use technologies, (3) results

of needs surveys regarding use of these technologies, (4) white papers describing project findings,

(5) tip cards to assist families in purchasing devices, (6) stronger partnerships between the consumer

and research and development communities, and (7) recommendations for memory and organization

device modifications and features for individuals with brain injury and mental retardation. The Brain

Injury Association, Inc. leads and administers this collaborative partnership, which includes the

Traumatic Brain Injury Model Systems Projects at Moss Rehabilitation Research Institute and

Spaulding Rehabilitation Hospital, the Institute on Disabilities/Center for Excellence on Developmental Disabilities at Temple University, and the University of Akron.
3-26 Technology for Access and Function

Disability and Rehabilitation Research Projects

Wisconsin

ATOMS Project: Assistive Technology Outcomes Measurement System

Design

University of Wisconsin/Milwaukee

Center for Disability Related Sciences and Technology

School of Allied Health Professions

P.O. Box 413

Milwaukee, WI 53201-0413

atomsproject@uwm.edu

http://www.uwm.edu/SAHP/

Principal Investigator: Roger O. Smith, PhD

Public Contact: 414/229-5625 (V); 414/229-5628 (TTY); Fax: 414/229-5100

Project Number: H133A010403

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $450,000

Abstract: The ATOMS Project (Assistive Technology Outcomes Measurement System) targets the

definition and pre-development phases of a next-generation AT outcomes measurement system. A

comprehensive needs assessment, prototype instrument development, and consensus building activities frame an integrated set of research and development activities to address urgent needs to identify

components of a future AT outcomes measurement system. In addition, these activities generate

information about the relationships of AT outcomes factors that produce a better understanding of AT

use and abandonment.
Technology for Access and Function 3-27

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

California

The Effect of Ankle-Foot Orthotic Design on Hemiplegic Gait

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

P.O. Box 3500 Los Amigos Station

12841 Dahlia Street

Downey, CA 90242-4111

pklab@larei.org

Principal Investigator: Sara J. Mulroy, PhD

Public Contact: 562/401-7177; Fax: 562/803-5693

Project Number: H133G000004

Start Date: June 1, 2000

Length: 36 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 00 $149,686; FY 01 $149,686

Abstract: This project defines the clinical criteria for optimal orthotic prescription in persons who

have had a stroke. The study originates from the identification of significant lower extremity weakness in a recent study of recovery of walking in patients after stroke. A pilot survey of 10 patients

who had been prescribed an ankle foot orthosis (AFO) after discharge from inpatient rehabilitation

found 40 percent of the respondents were no longer using their orthosis. Reasons for the abandonment included improved walking capability, inability to don the AFO independently, and lack of

improvement in walking. The results of this pilot indicate that the orthoses are not fully meeting the

needs of this patient population. There is a need to develop criteria for orthotic prescription based on

the patient’s lower extremity strength and muscle tone. In concert with the development of definitive

prescription criteria, patients need to be provided with information as to the purpose of the orthosis

and what changes in their walking are realistically expected.
3-28 Technology for Access and Function

Field-Initiated Projects (FIPs)

California

Robust, Low-Cost, Refreshable Braille Display

SRI International

333 Ravenswood Avenue

Menlo Park, CA 94025

richard.heydt@sri.com

Principal Investigator: Richard Heydt, PhD

Public Contact: 650/859-4452; Fax: 650/859-4941

Project Number: H133G000047

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $149,930; FY 01 $149,900

Abstract: This project conducts research to develop a refreshable braille cell that is inexpensive,

environmentally robust, and extensible to two-dimensional (page) braille displays. The project

capitalizes on microelectromechanical systems (MEMS) fabrication methods and novel

electroactuation technology to make braille cells that are significantly lower in cost than those

currently available. The purpose of the work is to establish a process for the construction of

refreshable braille displays that is not limited to a single line of braille characters and that creates

more affordable devices than existing refreshable displays, which often cost $5,000 or more. Goals

include: (1) demonstrating braille dot actuation that meets essential force, response time, power

dissipation, and other requirements; (2) designing and building several prototype braille cells; and

(3) testing the braille cells with experienced braille readers.
Technology for Access and Function 3-29

Field-Initiated Projects (FIPs)

California

Development of a Transitional Ortho-Therapeutic Walker

(TOTWalker) for Preschool Children with Physical Disabilities

Lucile Packard Children’s Hospitals at Stanford

Rehabilitation Technology and Therapy Center

1010 Corporation Way

Palo Alto, CA 94303-4304

christine.wright@medcenter.stanford.edu

http://www-med.stanford.edu/lpch/rec

Principal Investigator: Christine Wright

Public Contact: 650/237-9219; Fax: 650/237-9204

Project Number: H133G990103

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $149,941; FY 00 $149,978; FY 01 $149,998

Abstract: This project develops and evaluates a new and innovative support walker that allows

children with physical disabilities to maneuver in the indoor environments of home and school and

to approach people and manipulate objects. The Transitional Ortho-Therapeutic Walker

(TOTWalker) is designed primarily for children with cerebral palsy, TBI, or developmental delay,

who are 12 months to 5 years of age and who have no means for self-directed, upright mobility. The

TOTWalker provides a highly maneuverable and efficient means for achieving indoor mobility. It

also provides an efficient means for achieving mobility as measured by distance and speed of travel,

and increases a child’s accessibility to the environment.
3-30 Technology for Access and Function

Field-Initiated Projects (FIPs)

California

Optimizing Assistive Technology Service with Video Teleconferencing

Lucile Packard Children’s Hospitals at Stanford

Rehabilitation Technology Center

1010 Corporation Way

Palo Alto, CA 94303-4304

judy.henderson@medcenter.stanford.edu

http://www-med.stanford.edu/lpch/rec

Principal Investigator: Judy Henderson

Public Contact: 650/237-9222; Fax: 650/237-9204

Project Number: H133G990087

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $150,000; FY 00 $149,997; FY 01 $150,000

Abstract: This project develops an interactive video teleconferencing (VTC) protocol to provide

expert AT evaluations to individuals with significant physical and speech disabilities and their local

support teams living in rural or underserved areas. The VTC protocol includes methods, equipment,

and materials specific to the provision of augmentative communication, environmental control, and

computer access evaluations to improve independent functioning in daily living, academic settings,

employment, and leisure activities. The VTC protocol is developed during video teleconferencing

evaluations by a specialized team with extensive experience in these types of AT.
Technology for Access and Function 3-31

Field-Initiated Projects (FIPs)

California

A Refreshable Braille/Tactile Graphics Display for Human-Computer

Interaction

The Smith-Kettlewell Eye Research Institute

2138 Fillmore Street

San Francisco, CA 94115

brabyn@skivs.ski.org

http://www.ski.org

Principal Investigator: John A. Brabyn, PhD

Public Contact: 415/345-2100; Fax: 415/345-8455

Project Number: H133G990049

Start Date: April 1, 1999

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $149,998; FY 00 $149,973; FY 01 $149,966

Abstract: This project explores and evaluates a new concept for an electronically refreshable braille/

tactile graphics display for people who are blind. The goal is to allow manufacturing costs an order

of magnitude less than existing displays, and ready expansion to a full page of braille or tactile

graphics. The concept is based on heat-induced fluid phase changes to form a design with minimal

moving parts that lends itself to manufacture in arrays containing many dots rather than assembling

one dot at a time. Advantages include very low cost, the ability to assemble entire arrays in one step,

low power needs, physical compactness, easy expansion to a full page display, and reliance on

proven materials. The goals are to: (1) investigate appropriate materials and processes; (2) fabricate

and test a prototype with at least 20 braille cells (a larger two dimensional array if time permits); and

(3) conduct user testing to establish design parameters, user acceptability, speed, and comfort.
3-32 Technology for Access and Function

Field-Initiated Projects (FIPs)

California

Optimizing the Conditions for Reading with the Periphery of the

Visual Field

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

mm@ski.org

http://www.ski.org/Rehab/macKeben

Principal Investigator: Manfred MacKeben, PhD

Public Contact: 415/345-2112; Fax: 415/345-8455

Project Number: H133G990003

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $150,000; FY 00 $150,000; FY 01 $150,000

Abstract: This project studies the parameters for optimal letter and word recognition using the

periphery instead of the center of the retina in people with central (foveal) vision loss. The results are

used to develop a computer program that optimizes reading off a screen after foveal vision loss. The

project uses computer displays for presentation because they allow changing the display mode and

typeface instantaneously. Font creation software is used to modify characteristics of often-confused

letters, using an objective measure of salience, and the effect can be tested immediately. This optimizes typefaces for viewing with the peripheral retina. If it improves peripheral reading from a

screen, the product is made available for printing on paper.
Technology for Access and Function 3-33

Field-Initiated Projects (FIPs)

California

The Learning and Transfer of Prosthetic Control

San Francisco State University

1600 Holloway Avenue

San Francisco, CA 94132-1700

saw@sfsu.edu

http://www.mblab.sfsu.edu

Principal Investigator: Stephen Wallace, PhD

Public Contact: 415/338-6984; Fax: 415/338-7566

Project Number: H133G000024

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $149,011; FY 01 $149,011

Abstract: By studying the use of a simulated body-powered upper-extremity artificial limb, this

project hopes to reduce the learning time required to use a prosthetic limb effectively and to decrease

the unusually high rejection rates for people with amputations fitted with a new prosthesis. Project

objectives include: (1) describing how people learn to control and coordinate body-powered upperextremity prostheses, by assessing tasks related to daily living, in regard to changes in movement

strategies, the rate at which learning occurs, and the degree to which changes in performance are

maintained over a retention interval; (2) understanding bilateral transfer of movement components

used to reach, grasp, transport, and apply appropriate pressure to objects; and (3) determining

whether the type of prosthesis (i.e., voluntary opening and voluntary closing) influences the rate at

which an individual achieves functional control of activities related to prosthetic manipulation. After

a thorough understanding of how people learn prosthetic control is developed, the simulator could be

successfully employed after amputation, up to prosthesis fitting, to familiarize patients with prosthesis use and control skills. Findings could also provide therapists with new strategies for training

people with amputations to regain functional independence with a newly acquired artificial limb.

Finally, the experiments contribute to the development of a theoretical knowledge base for clinical

practice.
3-34 Technology for Access and Function

Field-Initiated Projects (FIPs)

Delaware

Personalized Synthetic Speech Using ModelTalker: Development and

Evaluation

University of Delaware

Alfred I. duPont Hospital for Children

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899

bunnell@asel.udel.edu

http://www.asel.udel.edu/speech

Principal Investigator: H. Timothy Bunnell, PhD

Public Contact: 302/651-6835; Fax: 302/651-6895

Project Number: H133G990182

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $150,000; FY 00 $150,000; FY 01 $150,000

Abstract: This project allows a sample group of consumers with ALS to capture their own voice for

use in an experimental alternative and augmentative communication (AAC) device called

ModelTalker. The new “corpus-based” speech synthesizer is capable of capturing voices and producing speech that can range in quality from that of recorded natural speech to high quality synthetic

speech and produce synthetic speech that can sound like the individual, and can additionally “play

back” utterances that were not actually recorded, but have been constructed (synthesized) from bits

of recorded speech. The project goals are: (1) to improve the voice capture procedures for creating

personalized voices, (2) to modify aspects of the synthesis and voice capture software to make them

more user friendly, (3) to prepare documentation and tutorial materials to allow people who are not

speech scientists to prepare their own personalized voices, and (4) to evaluate the voice capture

procedures and the synthesizer itself with one population of people who can benefit (people with

ALS). The project is developing an optimal list of utterances for talkers to record for ModelTalker, a

list that is as short as possible without compromising the quality of the resulting synthetic speech.

Once the list is optimized, the output from ModelTalker is compared to other synthesizers commonly

used in AAC devices. Based on the results of this evaluation, the list, the ModelTalker, or both are

modified as needed.
Technology for Access and Function 3-35

Field-Initiated Projects (FIPs)

Delaware

Specifying the Facilitative Effects of Animation on the Understanding

of Action Word Representatives

Center for Applied Science and Engineering

Alfred I. duPont Hospital for Children

University of Delaware

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899

mineo@asel.udel.edu

Principal Investigator: Beth A. Mineo Mollica, PhD, 302/651-6836

Public Contact: Sonja Simowitz, Project Coordinator, 302/651-6796 (V); 302/651-6794 (TTY);

Fax: 302/651-6793

Project Number: H133G990115

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $149,964; FY 00 $149,920; FY 01 $149,979

Abstract: Using a customized computer-based assessment protocol, this project examines the

differential ability of several types of graphics (static and animated) to convey the meaning of action

word representations. Picture-based language representations afford access to augmentative and

alternative communication (AAC) options for many individuals who otherwise would be unable to

benefit from communication enhancement approaches. Some new products in the AAC marketplace

offer consumers the feature of animation. While it has been presumed that animation would make the

meaning of verb representations more salient, this position has not been proven, and it may in fact be

the case that the complexity of the linguistic task is affected by the complexity of the representation.

Six varied representational types are investigated with children with typical development, children

with disabilities, adults with developmental disabilities, and adults with acquired cognitive disabilities. Further, the investigators attempt to determine which characteristics of action representation

positively affect performance.
3-36 Technology for Access and Function

Field-Initiated Projects (FIPs)

Delaware

An Upper Limb Orthosis for People with Muscular Dystrophy

Alfred I. duPont Institute of the Nemours Foundation

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899

trahman@nemours.org

Principal Investigator: Tariq Rahman, PhD

Public Contact: 302/651-6831; Fax: 302/651-6895

Project Number: H133G000117

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $147,970; FY 01 $149,497

Abstract: This project develops an orthosis that provides a full range of movement for people with

upper-limb weakness while still supporting their arms against gravity. For a person whose sensory

system is intact, the orthosis uses their sensory system to augment their residual motor ability. It

provides proprioception, an essential part of an effective interface between the human and the orthosis. Five prototypes are developed and clinical trials with twenty consumers are performed. Upon

completion of the evaluation and analysis phases, the technology is transferred to a private company.

The expected result is a relatively inexpensive, functional, and well-concealed assistive device that

provides the opportunity for educational, vocational, and social interaction for thousands of individuals with upper-extremity motor disabilities.
Technology for Access and Function 3-37

Field-Initiated Projects (FIPs)

Florida

The Development of a Tool to Enhance Communications Between

Blind and Sighted Mathematicians, Students, and Teachers: A Global

Translation Appliance

University of South Florida

Lakeland Campus

3433 Winter Lake Road

Lakeland, FL 33803

arthur@lklnd.usf.edu

Principal Investigator: Arthur I. Karshmer, PhD

Public Contact: 863/667-7067; Fax: 863/667-7096

Project Number: H133G010046

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $149,540

Abstract: This project builds a translator for several mark-up notations used in scientific,

mathematic, engineering, and technological fields. The primary difficulty encountered by students

with visual impairments in pursuing studies in science, mathematics, engineering or technology is

how to read and write mathematics. To overcome the limited expressiveness of six-dot braille characters, a plethora of notations for marking-up mathematics have been devised, including Nemeth

Math code, Marburg code, the French standard, the Stuttgart standard, and others. These notations

are braille-based and designed specifically for people with visual impairments, and are not known to

sighted individuals; as a result, written technical communication between individuals who are

sighted and individuals who have visual impairments is quite difficult. Further, communication

between individuals who have visual impairments is also difficult when different notations are used.

The new tool allows free conversion among the Marburg code, Nemeth code, Latex and MathML by

developing a common intermediate format (CIF) for representing mathematics, and uses logic

programming and denotational semantics to translate between supported notations and the CIF. The

CIF is also used to develop a mark-up notation independent auditory browser for the understanding

of complex mathematical expressions by users with visual impairments. The auditory browser

conveys the structure of a mathematical expression as well as its content via speech output. The user

also has the ability to navigate the expression interactively and focus on its subparts in order to

understand the expression better.
3-38 Technology for Access and Function

Field-Initiated Projects (FIPs)

Georgia

Telerehabilitation to Support Assistive Technology

Shepherd Center, Inc.

2020 Peachtree Road Northwest

Atlanta, GA 30309

mike_jones@shepherd.org

http://www.shepherd.org/shepherdhomepage.nsf/Pages/EducationCrawford?OpenDocument

Principal Investigator: Michael L. Jones, PhD

Public Contact: 404/350-7595; Fax: 404/350-7596

Project Number: H133G990133

Start Date: May 1, 1999

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $149,985; FY 00 $149,992; FY 01 $149,968

Abstract: This project explores the application of telerehabilitation to support AT and AT services,

implementing three activities that involve development and testing of new methods and devices. The

first component examines telerehabilitation to provide training in the use of augmentative communication systems to individuals with significant physical and speech disabilities. The second component explores the use of telecommunications technology by seating and mobility specialists to

provide follow-up consultation and verify setup and use of new wheelchairs. If successful, this

approach permits follow-up with consumers who cannot return to the clinic for a follow-up clinic

visit. The third component investigates the use of videoconferencing technology to complete accessibility assessments in remote locations.
Technology for Access and Function 3-39

Field-Initiated Projects (FIPs)

Illinois

Development of a Rehabilitator for Arm Therapy After Brain Injury

Rehabilitation Institute Research Corporation

Sensory Motor Performance Program

345 East Superior Street

Chicago, IL 60611

dreinken@uci.edu

http://www.eng.uci.edu/~dreinken/djr.htm

Principal Investigator: David Reinkensmeyer, PhD; W. Zev Rymer, MD, PhD

Public Contact: 949/824-5218; Fax: 949/824-8585

Project Number: H133G80052

Start Date: May 1, 1998

Length: 36 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 98 $124,117; FY 99 $122,181; FY 00 $124,939; FY 01 (No-cost extension

through 4/30/02)

Abstract: This project develops a self-therapy rehabilitator for the arm after hemiplegic stroke and

other types of brain injury to correct the current lack of appropriate technology. The device, called

the “Assisted Rehabilitation and Measurement (ARM) Guide,” implements a common manual

therapy technique, active assistance for reaching movements. In addition, the ARM Guide is designed to provide visual feedback of guidance forces to the user during assisted reaching. Dr.

Reinkensmeyer can be reached at the Department of Mechanical and Aerospace Engineering, 4200

Engineering Gateway, University of California, Irvine, Irvine, CA 92697-3975.
3-40 Technology for Access and Function

Field-Initiated Projects (FIPs)

Illinois

Neuromuscular Reorganization to Improve the Control of Artificial

Limbs

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1124

Chicago, IL 60611

tkuiken@rehabchicago.org

Principal Investigator: Todd A. Kuiken, MD, PhD

Public Contact: 312/238-8072; Fax: 312/238-1166

Project Number: H133G990074

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $149,900; FY 00 $149,512; FY 01 $149,780

Abstract: This project is concerned with improving myoelectric control of powered prostheses using

nerve-muscle grafts. Currently, people with upper limb amputations can only control one joint at a

time with myoelectric prostheses. By grafting the residual nerve endings to muscles in or near an

amputated limb, it may be possible to produce additional, independent surface electromyographic

(EMG) signals. The muscle would essentially be used as a biological amplifier of the nerve signals.

These additional myoelectric signals could be used to control multiple joints simultaneously in

externally powered prostheses. This approach has great potential for improving the functional use of

upper limb prostheses.
Technology for Access and Function 3-41

Field-Initiated Projects (FIPs)

Illinois

Cost Effectiveness of a Computerized Oral Reading Treatment for

Aphasia

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611-4496

lcherney@rehabchicago.org

Principal Investigator: Leora Cherney, PhD

Public Contact: 312/238-1117; Fax: 312/238-2635

Project Number: H133G010098

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $149,470

Abstract: This study evaluates the efficacy and cost-effectiveness of an innovative, computerized

treatment program for individuals with aphasia, a communication disorder and chronic condition.

Aphasia requires long-term treatment to ensure that individuals can participate in a full range of

vocational, recreational, and social activities. However, recent health care changes have seriously

curtailed the amount of treatment received by patients with aphasia. In this environment effective

treatments should be developed that can be easily administered and delivered at minimum cost.

Preliminary studies indicate that Oral Reading for Language in Aphasia (ORLA) is effective in

improving reading comprehension in patients with all types of aphasia. In addition to improvements

in reading comprehension, cross-modal generalization occurs in some patients, with improvements

in auditory comprehension and oral expression evident.
3-42 Technology for Access and Function

Field-Initiated Projects (FIPs)

Iowa

Training Material for Blind Computer Users

Iowa Department for the Blind

524 Fourth Street

Des Moines, IA 50309

keninger.karen@blind.state.ia.us

http://www.blind.state.ia.us/assist

Principal Investigator: Karen A. Keninger

Public Contact: 515/281-1291; Fax: 515/281-1263

Project Number: H133G990195

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 99 $149,997; FY 00 $149,993; FY 01 $149,980

Abstract: This project develops appropriate training materials in alternative media for computer

users who are blind and develops a self-sustaining mechanism to continue the production of independent, high-quality training material. Objectives include: (1) research, develop, evaluate, and produce

30 training packages in alternative media, each of which addresses a specific combination of screen

reader and application; (2) develop, evaluate, document, and implement five marketing strategies for

dissemination of training products; (3) develop a procedures manual detailing the strategies, procedures and operations used to develop, produce, and market training packages; (4) develop a viable

business plan for the enterprise based on research and market experience; and (5) locate appropriate

individuals and/or existing entities interested in taking over the project. As computer hardware and

software continue to evolve, computer users with visual impairments need accessible and appropriate

training material in order to keep up with the changes and remain competitive in school, at work, and

in their communities. This project ensures a continuing enterprise over the long run to meet this

critical need for appropriate training material.
Technology for Access and Function 3-43

Field-Initiated Projects (FIPs)

Kansas

Reusing AT/DME Acquired Through Public Funds: Developing a CostNeutral, Consumer-Driven Program

University of Kansas Center for Research, Inc.

Schiefelbusch Institute for Life Span Studies

1000 Sunnyside Avenue

1052 Dole

Lawrence, KS 66045-7555

ssack@ku.edu

http://www.atk.ku.edu

Principal Investigator: Sara H. Sack, PhD, 620/421-8367

Public Contact: 620/421-6550, ext. 1783; Fax: 620/421-0954

Project Number: H133G010102

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 01 $149,740

Abstract: This project builds a consumer responsive, cost-neutral program to reuse and redistribute

durable medical equipment. The project addresses state and national needs in three critical ways.

First, it increases access to durable medical equipment and AT (including previously used technology) that promotes the likelihood that people are able to reach personal goals related to independent

living, employment, and improved social lives. Second, using previously owned equipment in good

condition spreads the benefit of limited state and federal resources across more people. And finally,

the reuse program reduces the consumption of natural resources such as aluminum, glass, plastics,

and fuel. The Reuse Program is composed of four interrelated components, including a data tracking

system, a consumer follow-up system, a reuse and consignment system, and marketing. This project

is a collaboration of the Technology Act grantee for Kansas, the Assistive Technology for Kansans

project (ATK), Kansas Medical Policy (Medicaid), Durable Medical Equipment vendors, and consumers.
3-44 Technology for Access and Function

Field-Initiated Projects (FIPs)

Kansas

The Influence of Real-Time Frequency Transposition on the

Recognition and Understanding of Speech by Adults Who Are Hearing

Impaired

Wichita State University

Communicative Disorders and Sciences

1845 North Fairmont

Wichita, KS 67260-0075

ray.hull@wichita.edu

Principal Investigator: Raymond Hull, PhD

Public Contact: 316/978-3271; Fax: 316/978-3291

Project Number: H133G000188

Start Date: September 1, 2000

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $129,520; FY 01 $111,193

Abstract: This project tests a new generation of real-time frequency transposition hearing aids. The

purpose is to compare the influence of the new devices with that of conventional hearing aids on the

recognition and understanding of speech by adults who possess the most common type of hearing

loss among adults with hearing impairments: precipitous high frequency sensorineural hearing loss.

Performance in speech recognition and speech understanding in adults who possess significant

hearing loss is compared with the performance of conventional hearing aids. The project is based on

the premise that adults who possess sensorineural hearing loss in the moderate-to-severe range

generally possess their best hearing in the lower frequencies. Audiologists attempt to take advantage

of that usable hearing when fitting them with hearing aids in order to provide the person with the

greatest advantage for the recognition and understanding of speech. However, in spite of current

technology, it becomes difficult to amplify the better low frequency hearing and also amplify sound

in the middle-to-high frequencies with enough gain to enhance the person’s hearing in that range

without discomfort or overamplification in the lower frequencies.
Technology for Access and Function 3-45

Field-Initiated Projects (FIPs)

Massachusetts

Access to Convergent Media

WGBH Educational Foundation

125 Western Avenue

Boston, MA 02134

ncam@wgbh.org

http://ncam.wgbh.org

Principal Investigator: Larry R. Goldberg

Public Contact: Tom Wlodkowski, 617/300-3486; Fax: 617/300-1035

Project Number: H133G990105

Start Date: August 1, 1999

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $150,000; FY 00 $150,000; FY 01 $150,000

Abstract: This project attempts to make it possible for people who are blind or who have visual

impairments to use convergent media effectively, by influencing industry standards and developing

new media delivery technologies. “Convergent media” refers to programming and services growing

out of the intersection of broadcast and cable television, digital television, PC, and Internet technologies. The project objectives are: (1) to propose and develop standard approaches to tag, parse, and

present data so that electronic program guides and advanced services are accessible; (2) to develop

software/hardware specifications for a prototype system or systems, that enables orientation, navigation, and feedback when using electronic program guides; (3) to collaborate on development of the

prototype access system and integrate it into an alpha advanced cable set-top box; and (4) to identify

barriers to using convergent media, outline solutions, and suggest methods for carrying out such

solutions.
3-46 Technology for Access and Function

Field-Initiated Projects (FIPs)

Massachusetts

Access Solutions for Rich Media: Tools, Pathways, and Resources

WGBH Educational Foundation

CPB/WGBH National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

geoff_freed@wgbh.org

http://ncam.wgbh.org

Principal Investigator: Geoff Freed, 617/300-4423

Public Contact: Andrew Kirkpatrick, 617/300-4220; Fax: 617/300-1035

Project Number: H133G000109

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 00 $150,000; FY 01 $150,000

Abstract: The Access to Rich Media Project was established to ensure that people with visual or

auditory impairments can access rich media that is made available online. Project staff work with

researchers, technology developers, Web designers, and consumers to develop, test, and disseminate

solutions to facilitate improvements in the accessibility of rich media. The project: (1) provides Web

designers, multimedia developers, and access technology researchers with version 2.0 of MAGpie, a

captioning and description tool for use with a variety of media technologies; (2) runs the Rich Media

Accessibility Resource Center, with examples of accessible rich media, information about available

tools for rich media, links to a range of relevant resources, and discussion about multimedia access

issues and solutions; and (3) generates research findings from annual focus groups with Web users

who have visual impairments or who have auditory impairments.
Technology for Access and Function 3-47

Field-Initiated Projects (FIPs)

Massachusetts

Access to Digital Television

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

ncam@wgbh.org

http://ncam.wgbh.org

Principal Investigator: Gerry Field

Public Contact: Mary Watkins, 617/300-3400; Fax: 617/300-1035

Project Number: H133G010170

Start Date: August 1, 2001

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $150,000

Abstract: In the transition of the nation’s television system from analog to digital television (DTV)

broadcasts, this “DTV Access” project represents the needs of people with sensory disabilities.

Serious technical challenges may prevent Americans from participating in the pending transformation of communications and program delivery technologies if they are deaf, hard-of-hearing, blind or

if they have low vision. This project leads the effort to ensure that the next-generation of DTV

equipment does not replicate current problems or create new ones in the need to comply with the

Federal Communications Commission-mandated digital transition. Project staff are working with

broadcasters and standards-setting bodies to develop standards and open protocols, and to support

implementation of captions and descriptions in DTV broadcasts. The DTV Access project addresses

additional challenges that arise when broadcast programming is delivered via cable, satellite, Internet

or wireless technologies. It also works to include people with sensory disabilities in the audience for

the wealth of new program enhancements, interactive capabilities, and public and private data services that DTV promises to deliver. The project unites industry, standards-setting bodies, regulatory

agencies, and consumers who have disabilities in a national, high-profile collaboration to provide

equal access for people with disabilities to DTV programming, enhancements, interactive components, and data services.
3-48 Technology for Access and Function

Field-Initiated Projects (FIPs)

Massachusetts

Word for Word: Developing an Enhanced Tool for Individuals with

Disabilities

Education Development Center, Inc.

Center for Family, School, and Community

55 Chapel Street

Newton, MA 02458-1060

bfollansbee@edc.org

http://www.edc.org/spk2wrt

Principal Investigator: Robert Follansbee, EdD, 617/969-7100

Public Contact: Fax: 617/969-3440

Project Number: H133G000204

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $149,998; FY 01 $149,996

Abstract: This project creates, documents, and tests new speech recognition technology. Tasks

include: (1) designing an innovative software product, Word for Word, that addresses the writing

needs of people with a wide range of disabilities by integrating two powerful text entry modes,

speech recognition and word prediction, in an interface based on principles of universal design; (2)

working in collaboration with Don Johnson, Inc., a leading producer of special needs software, on

the manufacture and marketing of this product, based on the prototype; (3) working in collaboration

with a producer of speech recognition software (i.e., Dragon Systems or IBM Corporation) on the

design and implementation of the proposed product based on the prototype; (4) developing materials

to support the use and dissemination of the product; and (5) testing the educational outcomes associated with the use of the product.
Technology for Access and Function 3-49

Field-Initiated Projects (FIPs)

New Jersey

The Use of Virtual Reality Technology for Assessment of Driving Skills

Following Acquired Brain Injury

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

mschultheis@kmrrec.org

http://www.kmrrec.org/KM/npsych/np_lab.html

Principal Investigator: Maria T. Schultheis, PhD

Public Contact: 973/324-3528; Fax: 973/243-6984

Project Number: H133G000073

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $116,732; FY 01 $144,010

Abstract: This project develops a virtual reality driving system (VRDS) for the assessment of

driving ability in persons with acquired brain injury (ABI), specifically TBI and stroke, and examines the device’s efficacy and validity. The primary objectives are: (1) to evaluate the concurrent

validity of a virtual reality driving protocol by comparing it to a traditional rehabilitation-hospitalbased driving evaluation; (2) to examine the effects of the addition of complex and challenging

driving factors, including nighttime and traffic congestion, on driving performance within a virtual

reality environment; and (3) to elucidate the effects of demographic and medical factors that may

impede or facilitate driving performance within a virtual reality environment. To achieve the first and

third objectives, approximately 80 participants with ABI are administered both the traditional hospital-based driving evaluation and the VRDS. To address the second objective and allow comparison

and interpretation of VRDS performance, an additional group of 20 age-and-education-matched,

healthy control subjects are administered the VRDS.
3-50 Technology for Access and Function

Field-Initiated Projects (FIPs)

New York

Optimizing Posture, Trunk Control, and Reach of Wheelchair Users

Center for Rehabilitation Technology

Helen Hayes Hospital

Route 9W

West Haverstraw, NY 10993

crthhh@mindspring.com

http://www.helenhayeshospital.org/crt.htm

Principal Investigator: Stephen H. Sprigle, PhD, 845/786-4806

Public Contact: Mary Wootten, 845/786-4995; Fax: 845/786-4875

Project Number: H133G990048

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $149,489; FY 00 $149,489; FY 01 $147,548

Abstract: The study’s objective is to improve function via better postural support by developing

clinical guidelines and prototype devices that accommodate to the varying needs for trunk stability

and mobility throughout the day. To meet this objective, the study has two aims: (1) to determine the

effects of posture and postural supports (cushion, backrest height and supports) on the trunk control

and upper extremity function of wheelchair users, and (2) to determine if optimizing back height and

cushion type permit people to sit with an erect posture without hindering function. For wheelchair

users, balancing sufficient trunk support with adequate trunk mobility has important functional and

medical consequences. Better understanding of the posture-function relationship and improved

design concepts are needed to improve trunk control of wheelchair users. Improved control permits

stability during activities of daily living while not hindering function by restricting mobility.
Technology for Access and Function 3-51

Field-Initiated Projects (FIPs)

North Carolina

Geographic Information System Community Resource Mapping

Orelena Hawks Puckett Institute

18A Regent Park Boulevard

Asheville, NC 28806-3727

dunst@puckett.org

http://www.puckett.org

Principal Investigator: Carl Dunst, PhD

Public Contact: 828/255-0470; Fax: 828/255-9035

Project Number: H133G990132

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 99 $149,755; FY 00 $149,737; FY 01 $149,734

Abstract: This project develops and evaluates the use of Geographic Information System (GIS)

mapping technology as an information management system for promoting the flow of services,

resources, and supports to individuals with disabilities and their families. It studies the methods

practitioners, families, and individuals with disabilities can use to identify the individuals, programs,

organizations, etc., that constitute sources of supports and resources in the community. The GIS

System is developed in a user-friendly and community specific format that matches the ways in

which families think about community resources.
3-52 Technology for Access and Function

Field-Initiated Projects (FIPs)

North Carolina

Promoting the Practice of Universal Design

North Carolina State University School of Design

Center for Universal Design

219 Oberlin Road

Box 8613

Raleigh, NC 27695-8613

molly_story@ncsu.edu

http://www.design.ncsu.edu/cud

Principal Investigator: Molly Story

Public Contact: 303/699-8133; Fax: 303/699-4703

Project Number: H133G80060

Start Date: June 1, 1998

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $124,970; FY 99 $124,955; FY 00 $124,993; FY 01 (No-cost extension

through 5/31/02)

Abstract: This project promotes the practice of universal design by developing and implementing a

self-supporting product design evaluation and marketing program that responds to consumer and

industry needs. Universal design is the design of products and environments that are usable, to the

greatest extent possible, by everyone regardless of their age or ability. The critical next step toward

increasing the practice of universal design is adoption and application of its principles both by

consumers and by industry. The three objectives of this project are to improve consumers’ ability to

recognize universal design, to improve designers’ ability to meet the needs of a diverse consumer

base, and to recognize and support industry efforts to market universal design successfully. Ways

these objectives are achieved through this project include: (1) developing a set of performance

measures that reflect the Principles of Universal Design, (2) confirming the reliability of these

measures and pilot testing the evaluation program, (3) developing a plan of self-support for the

universal design evaluation program, and (4) disseminating the results to appropriate audiences. The

project develops a sound universal design program based on information gathered directly from

future users—consumers, designers, and marketers—as well as the universal design research community.
Technology for Access and Function 3-53

Field-Initiated Projects (FIPs)

Oregon

Information Technology Access for Adults with Cognitive Disabilities:

Participatory Development of a Model for Software Accessibility,

Training, and Support

Eugene Research Institute

132 East Broadway, Suite 747

Eugene, OR 97401

tkeating@eugeneresearch.org

http://www.eugeneresearch.org

Principal Investigator: Thomas Keating, PhD

Public Contact: 541/342-3763; Fax: 541/342-4310

Project Number: H133G010162

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $149,996

Abstract: This project improves IT access for persons with significant cognitive disabilities through

participatory development of a model incorporating accessible life skills software, effective consumer training, and innovative methods for ongoing technical support. Many persons with significant cognitive disabilities are excluded from the benefits of IT because software interfaces are too

complex, the content is not relevant to their life management requirements, and not enough is known

about their training and technical support needs. This project builds on previous efforts in development of life skills software to produce a field-tested and expanded array of applications along with a

replicable model for training and technical support in home, community, and educational settings.

Based on the project’s participatory development approach, persons with cognitive disabilities are

integrally involved in research, development, and dissemination activities.
3-54 Technology for Access and Function

Field-Initiated Projects (FIPs)

Pennsylvania

The Mentor Project: Exemplary Practices for Developing Supportive

Mentor-Protégè Relationships Via the Internet for People with

Significant Physical and Speech Disabilities

Pennsylvania State University

Department of Communication Disorders

217 Moore Building

University Park, PA 16802

jcl4@psu.edu

http://espse.ed.psu.edu/SPLED/McN/Mentor3/public/index.html

Principal Investigator: Janice Light, PhD

Public Contact: 814/863-2010; Fax: 814/863-3759

Project Number: H133G80044

Start Date: August 1, 1998

Length: 36 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 98 $124,806; FY 99 $124,887; FY 00 $124,555; FY 01 (No-cost extension

through 7/31/02)

Abstract: This project addresses two critical needs: it responds to the needs of people with a combination of significant physical and speech disabilities, including those who are members of traditionally underrepresented groups; and it investigates the use of teleconferencing technology to provide

disability-related services. People with physical and speech disabilities who use augmentative and

alternative communication (AAC) confront significant barriers in their drive to maximize educational and vocational achievement, inclusion in society, self-sufficiency, and the overall quality of

their lives. These problems are particularly acute for adolescents and young adults, especially those

who reside in rural areas or who are members of ethnic and racial minorities. The project provides

adolescents and young adults who use AAC with regular access to competent mentors with similar

disabilities who can provide encouragement, collaborative problem-solving, and information about

disability-related resources. Activities include: (1) investigating the effect of a leadership training

program, delivered via the Internet, on the acquisition, generalization, and maintenance of problemsolving strategies and mentoring skills by 30 adults with physical and speech disabilities; (2) investigating the effect of a mentor program for 30 adolescents and young adults who have physical and

speech disabilities, as well as the effect on their successful attainment of individualized educational,

vocational, social, and personal goals; and (3) developing, evaluating, and disseminating resource

materials documenting exemplary practices for the implementation and evaluation of effective

mentoring programs to be used by people with disabilities, their families, and rehabilitation professionals. Consumers with disabilities are integrally involved in planning, implementation, evaluation,

and dissemination activities of the project.
Technology for Access and Function 3-55

Field-Initiated Projects (FIPs)

Virginia

The Braille Power Reader Program

Science Applications International Corporation

4001 Fairfax Drive, Suite 450

Arlington, VA 22203

Principal Investigator: Daniel E. Hinton

Public Contact: 703/248-7717

Project Number: H133G010028

Start Date: August 1, 2001

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $149,839

Abstract: This project develops hardware and software that provides people who are deaf-blind or

blind with access to much of the digital media and technology that is available to sighted people in

academic and employment environments. Development efforts include both newly designed hardware and software and improvements on legacy products previously designed by Science Applications International Corporation (SAIC) and Tactilics. These products integrate enhanced hardware

and software and provide 40-character electronic braille access to computers and all forms of IT.

Development of the braille Reader system is initially focused on the needs of people who are deafblind because of the close relationship between SAIC and the Helen Keller National Center

(HKNC), but the display technology is also important to people who are only blind. The teaming

arrangement of SAIC, Tactilics, and HKNC assures that the needs of all people who may benefit

from using the system—blind and deaf-blind—are met.
3-56 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

New York

An Audio/Tactile Accommodation for Improving Access to HighStakes Mathematics Assessments for Students Who Are Blind or

Visually Impaired

Touch Graphics

140 Jackson Street

Brooklyn, NY 11211

sl@touchgraphics.com

http://www.touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 718/383-8265; Fax: 718/389-1541

Project Number: EO-01-PO-3667

Start Date: September 1, 2001

Length: 6 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $59,608

Abstract: This project tests the feasibility of a system for administering multiple-choice math tests

to individuals who are blind or who have visual impairments. The system to be evaluated is based on

an audio/tactile computer interface that permits students to view diagrams and figures that accompany math questions in standardized tests.
Technology for Access and Function 3-57

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Colorado

QwikClick: An Intelligent Scanning Keyboard That Maximizes the

Capability of Single-Switch Users

SMS Consulting

8007 Hillsboro Court

Fort Collins, CO 80525

stephenmsutter@aol.com

Principal Investigator: Stephen M. Sutter

Public Contact: 970/635-0049; Fax: 970/635-0610

Project Number: ED-01-CO-0122

Start Date: September 17, 2001

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $150,000

Abstract: This project completes Phase I research on the QwikClick intelligent scanning system, a

highly flexible and intelligent scanning keyboard technology that helps single-switch users optimize

their performance and enjoyment in using a personal computer. Several important features and

capabilities are added to the base software to take advantage of physical and cognitive abilities as

well as the preferences of the user. System parameters and display options facilitate the minimization

of two conflicting issues: while the population of single-switch users has a wide range of abilities

and disabilities, studies have shown that barriers are created rather than minimized when features

and sophistication are added. The project also designs and implements a companion product,

QwikClickAdvisor. This environment allows the caregiver to make informed choices when modifying system parameters so the system can be customized for a particular user. QwikClickAdvisor is a

“wizard” type environment that provides: (1) pre-defined templates that customize the system based

on the user’s profile; (2) full control of all programmable system parameters and display options; and

(3) statistical feedback of the user’s performance and recommendations for parameter adjustments

for improved performance. Finally, the project includes extended field testing of the system to

evaluate its utility in a range of vocational, educational, and recreational activities.
3-58 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II

Iowa

Gesture Recognition System for Personal Computing Applications

Future of Technology and Health

P.O. Box 1233

Iowa City, IA 52244-1233

research@futh.com

http://www.futh.com/gesture.html

Principal Investigator: Jeffrey B. Bishop, PhD

Public Contact: 319/644-3787; Fax: 561/619-8059

Project Number: ED-01-CO-0124

Start Date: September 17, 2001

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $150,000

Abstract: This project develops a low-cost gesture recognition system that uses existing PC hardware and digital camera hardware to recognize head gestures. The new system recognizes multiple

head and face gestures to access computers, to be used by people with mobility impairments or other

disabilities, including cerebral palsy, ALS, stroke, SCI, and repetitive stress injury. Many people use

alternative input devices rather than the standard keyboard and mouse; the availability of powerful

personal computers and inexpensive digital video cameras create the opportunity to develop a new

type of practical computer interface: gesture recognition. The system is designed to use standard,

low-cost digital video cameras (under $100) and standard personal computers. One application to be

developed is the capability to “surf the web” hands-free using head gestures to navigate web pages,

including selecting and activating desired links. This has the potential to greatly improve the speed

of computer access, filling the gap between switches, speech recognition (which has a number of

disadvantages in work and school settings), and expensive head tracking systems. The technology

could be used to replace or augment existing computer switches (such as those activated by head,

foot, or hand).
Technology for Access and Function 3-59

Small Business Innovative Research (SBIR), Phase II

New York

Development of an Audio/Tactile Atlas of the World for Use by

Individuals Who Are Blind or Visually Impaired

Touch Graphics

140 Jackson Street

Brooklyn, NY 11211

sl@touchgraphics.com

http://www.touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 718/383-8265; Fax: 718/389-1541

Project Number: ED-01-CO-0125

Start Date: September 1, 2001

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $148,907

Abstract: This project creates a new and innovative Atlas of the World that is fully accessible to

readers who are blind, who have visual impairments, or who have other print disabilities. The atlas is

an accessory application for the Talking Tactile Tablet created by Touch Graphics, a computer

peripheral device on which raised-line and textured (tactile) plastic overlay sheets can be mounted.

Users press shapes, regions, and icons on the tactile surface to instigate interactions with a humanvoice narrator. A menu system allows the user to select from a number of operational modes that

provide access to a database of sociopolitical and geographical map information. National Geographic Maps provide cartographic content and associated information at no cost to the project, and

act as advisors to the project to ensure that the product meets current standards for print Atlases.
3-60 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II

Utah

Omnidirectional Wheelchair to Greatly Increase Mobility in

Vocational Rehabilitation and Independent Living Daily Activities

Lincoln Laboratories

1946 South 1600 West

College Ward, UT 84339

mel@autonomoussolutions.com

Principal Investigator: Mel Torrie

Public Contact: 435/755-2980; 435/757-5480; Fax: 435/752-0541

Project Number: ED-01-CO-0310

Start Date: September 1, 2001

Length: 24 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 01 $150,000

Abstract: This project develops a prototype omnidirectional wheelchair that is simple, light, inexpensive, and capable of outdoor navigation. Translation and rotation in any direction is accomplished. This retrofit requires only one additional motor and two sensors and effectively overcomes

the obstacles others have had in trying to commercialize this needed capability. This work draws

from the extensive experience the collaborators have had in VR, and in developing omnidirectional

vehicles and control systems.
Technology for Access and Function 3-61

Small Business Innovative Research (SBIR), Phase II

Virginia

A Low-Cost, High-Performance Physical Activity Monitor (PAM)

Barron Associates, Inc.

1160 Pepsi Place, Suite 300

Charlottesville, VA 22901

barron@bainet.com

http://www.barron-associates.com

Principal Investigator: B. Eugene Parker Jr., PhD

Public Contact: 434/973-1215; Fax: 434/973-4686

Project Number: ED-01-CO-0123

Start Date: September 17, 2001

Length: 24 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $150,000

Abstract: This project focuses on health-related physical fitness assessment and physical activity

monitoring. In particular, the team of Barron Associates, Inc. and the University of Virginia work to

develop a miniature, lightweight, low-profile, low-cost, high-performance multifunctional Physical

Activity Monitor (PAM) to collect, store, and analyze translational and rotational motion in children

and other subjects. The system addresses the deficiencies of current commercial activity monitors.

Monitoring of both motion and heart rate allows assessment of health-related physical fitness via

computation of the Energy Expenditure Index in ambulatory children both with and without disabilities. All information collected and stored on the PAM device is uploadable to a PC for off-line data

analysis.

Independent Living and Community Integration

Independent living recognizes that each person has the right to independence through

maximum control over his or her life, based on an ability and opportunity to make

choices in performing everyday activities. These activities include: managing one’s

personal life; participating in community life; fulfilling social roles, such as marriage,

parenthood, employment, and citizenship; sustaining self-determination; and

minimizing physical or psychological dependence on others. Community integration

incorporates ideas of both place and participation, so that a person is physically

located in a community setting, and participates in community activities. Issues of

consumer direction and control also are integral to concepts of community

integration. NIDRR’s research program encourages independent living and

community integration to achieve more successful outcomes for people with

disabilities, and it fosters the development of innovative methods to achieve these

outcomes and to measure achievement.

Contents

Rehabilitation Research and Training Centers (RRTCs) ...................................................................... 1

Disability and Rehabilitation Research Projects ................................................................................ 10

Field-Initiated Projects (FIPs) ............................................................................................................ 11

Small Business Innovative Research (SBIR), Phase I........................................................................ 36

Small Business Innovative Research (SBIR), Phase II ...................................................................... 39

Independent Living and Community Integration 4-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center on Personal Assistance

Services (PAS)

World Institute on Disability

510 - 16th Street, Suite 100

Oakland, CA 94612-1520

mailpas@wid.org

http://www.wid.org

Principal Investigator: Deborah Kaplan, JD

Public Contact: Tom Bleecker, PhD, 510/251-4338 (V); 510/208-9493 (TTY); 510/763-4100 (V,

main switchboard); Fax: 510/763-4109

Project Number: H133B70008

Start Date: July 1, 1997

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 97 $500,000; FY 98 $500,000; FY 99 $500,000; FY 00 $500,000; FY 01

$500,000

Abstract: This project furthers the understanding that Personal Assistance Service (PAS) systems

design can promote the economic self-sufficiency, independent living, and full integration of people

of all ages and disabilities into society. The project explores the models, policies, access to, and

outcomes of, personal assistance services, through: (1) gathering perspectives of consumers, program

administrators, policy-makers, and personal assistants using a state of the states survey and database

development; (2) a policy study; (3) a study of workplace PAS; and (4) a study on the conditions to

improve the quality and quantity of the Personal Assistant workforce.
4-2 Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Florida

Rehabilitation Research and Training Center on Positive Behavioral

Support

University of South Florida

Division of Applied Research and Educational Support (DARES)

Department of Child and Family Studies

13301 Bruce B. Downs Boulevard

Tampa, FL 33612

rrtcpbs@fmhi.usf.edu

http://www.rrtcpbs.org

Principal Investigator: Glen Dunlap, PhD

Public Contact: Kirsten Cuenca, 813/974-4612; Fax: 813/974-6115

Project Number: H133B980005

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 98 $600,000; FY 99 $600,000; FY 00 $600,000; FY 01 $600,000

Abstract: This project acquires and disseminates new knowledge to advance the field of behavior

support in school, home, and community settings. Through research and training projects, the Center

increases and enhances the effectiveness of behavioral support strategies, expands the applicability

of effective practices to broader and more diverse populations, and addresses the need for effective

training, technical assistance, and widespread dissemination. The three primary research projects: (1)

expand the applicability of effective interventions, (2) increase and enhance the effectiveness of

interventions, and (3) understand and describe the long-term impacts and processes of effective

behavioral support. Embedded within these research projects are systematic studies of nonaversive

interventions, etiology and prevention, maintenance, self-management, and functional assessment.

The three primary training projects focus on: (1) in-service and pre-service training, (2) dissemination, and (3) technical assistance. The Center is conducted as a consortium that includes the University of South Florida, the University of Oregon, State University of New York (SUNY) at Stony

Brook, the University of Kansas, the University of California at Santa Barbara, and the University of

California at Hayward.
Independent Living and Community Integration 4-3

Rehabilitation Research and Training Centers (RRTCs)

Florida

Rehabilitation Research and Training Center for Children’s Mental

Health

University of South Florida

Florida Mental Health Institute

13301 Bruce B. Downs Boulevard MHC2335

Tampa, FL 33612-3807

kutash@fmhi.usf.edu

http://rtckids.fmhi.usf.edu

Principal Investigator: Robert Friedman, PhD

Public Contact: Krista Kutash, PhD, 813/974-4661 (V); 800/955-8771 (TTY); Fax: 813/974-6257

Project Number: H133B990022

Start Date: September 28, 1999

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $750,000; FY 00 $750,000; FY 01 $300,000

Other Funding: FY 01 $520,000 (Center for Mental Health Services), $198,911 (Children’s Board

of Hillsborough County Florida), $188,932 (Florida Dept. of Children and Families), $131,250

(USDE - OSERS), $37968 (Texas A & M University), $22,500 (Panhandle Area Educational Cooperative), $64, 210 (Other)

Abstract: This program conducts an integrated set of field research projects, employing multiple

methods to examine policies affecting children with emotional disturbances and their families in

order to enhance the understanding of policy development, its implementation and effects. The

research program builds on an analytic framework for understanding variables related to translation

of policy into community-level actions. The consistency of state-level policy with system-of-care

principles is examined through a series of related studies that address: family perspectives, interagency collaboration, school reform in urban communities, local theories of change and their relationship to services and outcomes, Medicaid managed care and the State Children’s Health Insurance

Program, the impact of managed care and system-of-care policies on access to care for children of

color and their families, and development of a new instrument to assess interagency collaboration.

The Center’s dissemination approach includes conferences and meetings, peer-reviewed journal

articles, research briefs, presentations, the world wide web and other electronic media, and technical

assistance. This project participates in the NIDRR Scholars program, providing motivated undergraduates with internship experience in disability research.
4-4 Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Full Participation in

Independent Living

University of Kansas Center for Research, Inc.

1000 Sunnyside Avenue

4089 Dole

Lawrence, KS 66045

rtcfpil@ku.edu

http://rtcfpil.org

Principal Investigator: Glen W. White, PhD, 785/864-0590

Public Contact: 785/864-4095 (V); 785/864-0706 (TTY); Fax: 785/864-5063

Project Number: H133B000500

Start Date: January 1, 2001

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $499,876; FY 01 $499,864

Abstract: Through research, training, and dissemination, this project makes available personenvironment strategies that enable full participation in society by persons with disabilities from

diverse cultures, varying socioeconomic strata, and emerging disability populations. This mission is

implemented through multiple research and training activities that are influenced by independent

living (IL) philosophy and values; for example, participatory action research is emphasized, in which

consumers take an active role throughout the research process. The RRTC develops, tests, and uses

measurement tools to investigate the interactional relationship between personal and environmental

factors and their effects on full participation in IL by the designated populations. Based on the

project’s Analytical Research Framework, the four core areas of intervention development and

testing include: (1) increasing the knowledge base about the emerging universe of disability, (2)

community participation and wellness, (3) cultural IL accommodations, and (4) personal and systems

advocacy. This project participates in the NIDRR Scholars program, providing motivated undergraduates with internship experience in disability research.
Independent Living and Community Integration 4-5

Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center in Rehabilitation of

Persons with Long-Term Mental Illness

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

mfarkas@bu.edu; erogers@bu.edu

http://www.bu.edu/cpr/research/rtc2004/

Principal Investigator: Marianne Farkas, ScD; E. Sally Rogers, ScD, 617/353-3549

Public Contact: E. Sally Rogers, ScD, Fax: 617/353-7700

Project Number: H133B990023

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $749,990; FY 00 $749,990; FY 01 $350,000

Other Funding: FY 00 $300,000 (Center for Mental Health Services); FY 01 $300,000 (CMHS)

Abstract: This Center studies the recovery and rehabilitation of people with long-term mental illness

and the individual and environmental factors that promote recovery. It is linked by its programmatic

focus on three specific core areas, Recovery Dimensions, Rehabilitation Interventions, and Alternative Interventions; is strengthened by the use of the appropriate research strategies; and is assisted by

a vigorous program of training, technical assistance, and dissemination activities designed to maximize the impact of the RRTC at all levels in the field of psychiatric rehabilitation. The research

projects are designed to have an impact on the field, at the personnel, program, and system levels.

Research projects use a participatory research process with significant input from consumers and

other stakeholders, and culminate in dissemination, training, or technical assistance activities to

maximize the impact of the research program. The Training, Dissemination, and Technical Assistance (TDTA) projects are designed to provide exposure, experience, and expertise to knowledge

transfer. The TDTA component produces new technologies in recovery and rehabilitation, and

increases the likelihood that researchers, service providers, and others use the cumulative knowledge

developed by this Center.
4-6 Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Minnesota

Rehabilitation Research and Training Center for Community

Integration of Persons with Mental Retardation

University of Minnesota

RRTC/Institute on Community Integration

204 Pattee Hall

150 Pillsbury Drive Southeast

Minneapolis, MN 55455

lakin001@umn.edu

http://rtc.umn.edu

Principal Investigator: Charlie Lakin, PhD, 612/624-5005

Public Contact: Mary Hayden, PhD, 612/625-6046; Fax: 612/625-6619

Project Number: H133B980047

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000

Other Funding: $560,000 (Administration on Developmental Disabilities); $150,000 (Health Care

Financing Administration); $50,000 (additional NIDRR funds); $60,000 (University of Minnesota);

$60,000 (other)

Abstract: The Center conducts research, training, technical assistance, and dissemination to enhance

inclusion and self-determination of citizens with mental retardation and related developmental

disabilities (MR/DD). The research program has six outcome areas: support to families, state system

reform, Medicaid services, policies and practices for full participation, consumer controlled services,

and direct support personnel. The approach to each priority area includes: (1) research syntheses of

the state of knowledge and practice; (2) secondary analyses of high quality, topically relevant national and state data sets; (3) case studies of best practices; (4) evaluation of demonstration efforts to

improve policy and practice; (5) survey and interview studies of critical issues; and (6) group process

studies with key constituencies. An integrated intramural training program addresses the development of skilled disability researchers and rehabilitation professionals, including graduate students,

postdoctoral associates, and research interns. Outreach training programs provide training and

technical assistance to agencies and individuals providing support to people with MR/DD, including

members of their families. Outreach programs include conferences and workshops for a wide variety

of national, regional, and state audiences, a state of the art conference, and intensive technical assistance with community organizations, including advocacy and self-advocacy organizations. The

Center disseminates practical information to targeted audiences (i.e., IMPACT, Policy Research

Brief, Frontline Initiative) and maintains high standards for scholarly productivity (i.e., books,

journal articles). The Center provides print and Web site access to a variety of other information

including descriptions of best practices, national statistics on services and expenditures, resource

guides, and distance learning training.
Independent Living and Community Integration 4-7

Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Independent Living

Management (RRTC-ILM)

The Western New York Independent Living Project, Inc.

3108 Main Street

Buffalo, NY 14214-1384

dusiak@wnyilp.org; djusiak@acsu.buffalo.edu

http://www.wnyilp.org/RRTC/RRTC.html

Principal Investigator: Douglas J. Usiak

Public Contact: John Moffat, 716/836-0822; Fax: 716/835-3967

Project Number: H133B000002

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $600,000; FY 01 $600,000

Abstract: To help Centers for Independent Living (CIL) become integrated more fully with their

communities, this project identifies and applies best practices, finding examples from both inside

and outside the CIL network. The work is conducted embracing, supporting, and emulating the

principles of the independent living philosophy, which encompass consumer control, self-help,

advocacy, peer relationships, peer role models, and empowerment. The seven projects of the RRTCILM are: (1) developing a database of CIL profiles, aggregating the information required to develop

and implement a set of related research, training, and dissemination projects whose best practices

help to build a secure economic foundation for CILs; (2) designing and testing options for generating

funding from alternative sources, through collaborations with others that include building business

development strategies and analyzing the policy-related and programmatic consequences of various

funding options (such as those independent of public financing); (3) identifying best practices and

developing test programs that allow CILs to expand their services to youth with disabilities and their

families, including those from diverse cultural backgrounds, and to interface with existing educational and transitional programs to prepare children and youth for independent living; (4) modifying

and testing management models of other successful community-based organizations so those strategies benefit CILs; (5) investigating CIL and VR agency policies related to collaborations, and designing strategies for innovative partnerships that promote employment outcomes for individuals

with disabilities; (6) coordinating activities with the Rehabilitation Services Administration (RSA)

and providing them instruments, curricula, methodologies, resource guides, and research findings;

and (7) providing training and information for CIL policy-makers, administrators, and advocates on

the RRTC’s research findings and identified strategies.
4-8 Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on the Community

Integration of Individuals with Traumatic Brain Injury

Mount Sinai School of Medicine

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

http://www.mssm.edu/tbinet

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372 (V); 212/241-8978 (TTY); Fax: 212/348-5901

Project Number: H133B980013

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000; FY 01 $800,000

Abstract: The RTC is a product of participatory action research, emphasizing the empowerment of

individuals with TBI both in setting and carrying out its research agenda, and in implementing a

program aimed at strengthening the voices of individuals with TBI. The program includes four

evaluation projects and three basic research projects: (1) evaluating a measure of community integration that assesses both the individual’s level of participation and his or her experience of daily

activity; (2) evaluating an innovative approach to person-centered, community-based VR; (3) evaluating a peer mentoring program; (4) evaluating a program to prevent substance abuse in individuals

with TBI; (5) researching longitudinal studies of the emergence and resolution of behavioral/emotional challenges post-TBI; (6) researching factors associated with healthy aging after injury; and (7)

validating a brain injury screening approach used in school children. The RRTC is also active in

providing technical assistance and in training and dissemination activities.
Independent Living and Community Integration 4-9

Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center to Improve Services for

Children with Serious Emotional and Behavioral Disabilities and Their

Families

Portland State University

Regional Research Institute

School of Social Work

P.O. Box 751

Portland, OR 97207-0751

rtcinfo@rri.pdx.edu

http://www.rtc.pdx.edu

Principal Investigator: Barbara Friesen, PhD

Public Contact: Rachel Elizabeth, Public Information and Outreach Coordinator, 503/725-8118;

Fax: 503/725-4180

Project Number: H133B990025

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $725,000; FY 00 $725,000; FY 01 $300,000

Other Funding: FY 99 $150,000 (Center for Mental Health Services (CMHS)); FY 00 $155,000

(CMHS); FY 01 $570,000 (CMHS)

Abstract: This project conducts an integrated set of research, training, and technical activities to: (1)

develop and evaluate service delivery models for children with an emotional disturbance and their

families, including family-centered and culturally sensitive services; (2) define and evaluate the

formal and informal components of family support and identify successful family support interventions; (3) identify and evaluate early intervention strategies; and (4) identify, develop, and evaluate

communication skills to enable families and service providers to communicate effectively with each

other. Research issues include caregivers and employment, inclusive care, early intervention, education, service delivery, training, and mentoring. This project participates in the NIDRR Scholars

program, providing motivated undergraduates with internship experience in disability research.
4-10 Independent Living and Community Integration

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

District of Columbia

Leadership Development: A New Generation of Effective Leadership

Howard University

2900 Van Ness Street Northwest

Holy Cross Hall, Suite 100

Washington, DC 20008

swalker@howard.edu

Principal Investigator: Sylvia Walker, EdD

Public Contact: 202/806-8086; Fax: 202/806-8148

Project Number: H133A990020

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 99 $175,000; FY 00 $175,000; FY 01 $175,000

Abstract: This project improves services provided under the Rehabilitation Act as amended, especially services provided to individuals from minority populations. The goal of the project is to

increase the leadership competencies of individuals with disabilities from underserved and

underrepresented communities, thereby maximizing the full inclusion and integration of people with

disabilities from underserved and underrepresented groups into society, employment, independent

living, family support, and economic and social self-sufficiency. All activities are focused on promoting and ensuring full participation of members of groups who have traditionally been

underserved by the VR system. Community-based rehabilitation, disability, and educational organizations and entities work as collaborators to the project in nominating people from underserved and

underrepresented groups to participate in the training and to provide assistance to the participants in

the implementation of a follow-up plan of action. Individuals participate in a leadership development

training program that provides a broad range of technical assistance, consultation, and support

services to them during implementation of their individual action plans.
Independent Living and Community Integration 4-11

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

California

Parents with Disabilities and Their Adolescent Children

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

rolkin@lookingglass.org

http://www.lookingglass.org

Principal Investigator: Rhoda Olkin, PhD

Public Contact: 800/644-2666; Fax: 925/944-1859

Project Number: H133G990130

Start Date: October 1, 1999

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $150,000; FY 00 $150,000; FY 01 $150,000

Abstract: This project: (1) defines the national population of parents with disabilities with adolescent children and their demographic characteristics; (2) compares family responsibilities, i.e., household tasks and personal care tasks of adolescents in families in which a parent does or does not have

a disability; (3) furthers the understanding of key disability-related concerns for the parents and their

adolescent children; (4) furthers the understanding of family responsibilities within the context of

families in which a parent has a disability; (5) furthers the understanding of the influence of a parental disability on family togetherness and rituals; (6) develops a task analysis model that can be used

to evaluate the degree to which adolescents assist their parents with personal care tasks; (7) generates

hypotheses for further research on parents with disabilities and their children; and (8) develops and

documents methods of reaching underrepresented groups of parents with disabilities.
4-12 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

California

Occupational Therapy Evaluation and Training Module to Guide

Practice with Parents with Physical Disabilities

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

TLG@lookingglass.org

http://www.lookingglass.org

Principal Investigator: Megan Kirshbaum, PhD, 510/848-1112

Public Contact: 800/644-2666 (V); 800/804-1616 (TTY); Fax: 510/848-4445

Project Number: H133G010054

Start Date: November 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $150,000

Abstract: This project develops an evaluation tool and an evaluation training module that helps

occupational therapy students and clinicians in their work with parents with physical disabilities, a

currently underserved population. The training module, which consists of a clinical evaluation tool, a

manual, and a videotape, guides clinical reasoning and the ability to provide appropriate recommendations and options that take into consideration the baby care roles and adapted baby care equipment

needs of parents with physical disabilities who care for (or want to care for) their children. The

training module provides a guide to evaluation of baby care needs and intervention in a variety of

settings. Parents who have physical disabilities who also have children birth to age 3 inform production, piloting, and field-testing. Further, occupational therapy expertise is needed nationally regarding AT related to parenting. This is especially true as regards evaluation of parents with disabilities

whose capability is being questioned, for example in custody, child protection, or adoption situations. This module paves the way for more inclusion of occupational therapist expertise in these

evaluation circumstances.
Independent Living and Community Integration 4-13

Field-Initiated Projects (FIPs)

California

The Relationship Between Early Experiences and Development in

Young Children with Severe Visual Impairments: A Cross-Cultural

Perspective

California State University

Division of Special Education

5151 State University Drive

Los Angeles, CA 90032

jdotekw@calstatela.edu

Principal Investigator: Jamie Dote-Kwan

Public Contact: 323/343-4320; Fax: 323/343-4348

Project Number: H133G80119

Start Date: August 1, 1998

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $116,910; FY 99 $117,539; FY 00 $120,969; FY 01 (No-cost extension

through 7/31/02)

Abstract: This longitudinal project examines the relationship between early experiences and the

development of infants and toddlers who are blind. Subjects consist of 60 caregiver-child dyads

divided equally into four different ethnic groups (i.e., African-American, Hispanic/Latino, AsianAmerican, and Euro-American). The children, approximately 12 months old at the onset of the study,

are examined for approximately 16 months, with data collection occurring at four-month intervals.

Major objectives include: (1) to describe the home environment and early experiences of young

children with severe visual impairments; (2) to examine the differences in home environment and

early experiences between African-American, Hispanic/Latino, Asian-American, and EuroAmerican

families; (3) to examine the relationship between caregiver-child interaction and home environment

to the development of young children with severe visual impairments; (4) to identify within-group

variables that positively influence the developmental outcomes of young children with severe visual

impairments; and (5) to identify culturally accepted practices and strategies that facilitate the developmental outcomes of young children with severe visual impairments.
4-14 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Colorado

Evaluation of Voucher Alternatives for Early Intervention

Developmental Disability Services

University of Colorado Health Sciences Center

Department of Psychiatry

4200 East Ninth Avenue

Campus Box C268-63

Denver, CO 80262

steven.rosenberg@uchsc.edu

http://www.JFKPartners.org/evalvoucheralt.asp

Principal Investigator: Steven Rosenberg, PhD

Public Contact: 303/315-0178; Fax: 303/315-5641

Project Number: H133G80121

Start Date: July 1, 1998

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 98 $119,687; FY 99 $124,411; FY 00 $124,940; FY 01 (No-cost extension

through 6/30/02)

Abstract: This study compares the effect of Block (traditional) and Flexible (fee for service) funding

of Part C early intervention services on parent satisfaction, costs, and service utilization. Flexible

funding allows families to obtain services from multiple providers and programs. Block funded

services are provided through a single program that provides all Part C services for the child at a

fixed monthly rate. Preliminary findings indicate that children in Flexible funding receive fewer

educational services and more therapy than children served through Block funding.
Independent Living and Community Integration 4-15

Field-Initiated Projects (FIPs)

Florida

Home-Based Video-Counseling for Rural At-Risk Adolescents with

Epilepsy and Their Parents: An Accessibility and Outcome Analysis

University of Florida

College of Heath Professions

Department of Clinical and Health Psychology

P.O. Box 100165

Gainsville, FL 32610-0165

rgluecka@hp.ufl.edu; pdages@hp.ufl.edu

Principal Investigator: Robert L. Glueckauf, PhD, 352/265-0680, ext. 4-6880

Public Contact: Patricia Dages, Project Coordinator, 800/282-2962; 352/265-0680, ext. 4-4129;

Fax: 352/265-0468

Project Number: H133G990500

Start Date: December 1, 1999

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $149,900; FY 00 $149,900; FY 01 $149,900

Abstract: This project is evaluating the impact of issue-specific, video-system counseling on the

psychosocial and educational functioning of at-risk teens with epilepsy and their parents who reside

in rural areas. Objectives include: (1) assessing the difference between home-based video counseling

and office-based counseling on the level of improvement, severity, and frequency of specific problems identified by at-risk teens and their parents; (2) assessing the difference between home-based

video counseling and office-based family counseling on the therapeutic relationship between family

member and counselor, and on overall consumer satisfaction; (3) examining the effects of homebased video counseling and office-based counseling on overall family functioning; and (4) testing for

differences in adherence to intervention and in attrition rates between families in the two counseling

conditions.
4-16 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Illinois

Determining the Effectiveness of a Capacity-Building Program for

Individuals with Chronic Fatigue Syndrome

University of Illinois/Chicago

Department of Occupational Therapy (MC811)

1919 West Taylor Street

Chicago, IL 60612

rtaylor@wppost.depaul.edu

http://www.depaul.edu/~ljason/cfs

Principal Investigator: Renee Taylor, PhD

Public Contact: 312/996-3412; Fax: 312/413-0256

Project Number: H133G010136

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 01 $149,908

Abstract: This project evaluates the efficacy, replicability, and sustainability of peer-based intervention strategies applied to individuals with chronic fatigue syndrome (CFS) as implemented within a

Center for Independent Living (CIL). The project applies theoretical frameworks of empowerment

theory, participatory action research, control theory, and the new paradigm of disability. The predicted outcome is that such community-based intervention improves overall quality of life, functional capacity, illness severity, coping, and service utilization among individuals with CFS. In

addition, the study predicts that the intervention serves to increase knowledge and awareness of CFS

among CIL staff. The resulting findings, curriculum, and resource manual are disseminated to other

individuals with CFS, researchers, treatment providers, policy-makers, self-help groups, and to CILs

nationwide. These findings have important implications in the design of future studies for people

with CFS, and for individuals with other emergent disabilities, such as fibromyalgia, multiple chemical sensitivity, and Gulf War Syndrome.
Independent Living and Community Integration 4-17

Field-Initiated Projects (FIPs)

Illinois

University of Illinois at Chicago Mental Health Services Research

Program Medication Adherence Program Study (UIC-MAPS)

University of Illinois/Chicago

104 South Michigan Avenue, Suite 900

Chicago, IL 60603-5902

razzano@psych.uic.edu

http://www.psych.uic.edu/mhsrp

Principal Investigator: Lisa A. Razzano, PhD

Public Contact: 312/422-8180, ext. 20; Fax: 312/422-0740

Project Number: H133G010093

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $150,000

Abstract: This project examines the effects of a multifaceted curriculum designed to improve

adherence to medication and treatment regimens, explore attitudes regarding physical health and

treatment planning, and improve the ability of participants to return to work. The UIC-MAPS intervention comprises several components, including: (1) developing an educational workshop consisting of three one-hour modules regarding health information, use of anti-retroviral medications,

treatment planning, maintaining health, detecting early symptoms of illness progression, and other

topics; (2) developing individualized medication plans; (3) meeting with clients and their identified

sources of social support to address medication and services issues; and (4) hosting monthly peer-led

support groups on medication adherence, attitudes toward health and medication regimens, and

issues related to health, well-being, and quality of life. The project includes a comprehensive evaluation designed to make significant contributions to the state-of-the-science literature regarding employment and adherence among people living with HIV/AIDS. In addition, information from peer

support group leaders regarding their role(s) in working with other individuals living with HIV/

AIDS is examined. The Mental Health Services Research Program (MHSRP) at the University of

Illinois at Chicago is collaborating with Chicago House, a community-based HIV/AIDS services

organization on this project.
4-18 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Illinois

Moving Out of the Nursing Home and to the Community: Examining

and Effecting Social Change

University of Illinois/Chicago

Department of Occupational Therapy /

Department of Disability and Human Development

1919 West Taylor, M/C 811

Chicago, IL 60612-7250

hammel@uic.edu

Principal Investigator: Joy Hammel

Public Contact: 312/996-3513; Fax: 312/413-0256

Project Number: H133G010033

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $149,989

Abstract: This project develops, evaluates, and disseminates a social action and networking program for people with disabilities who are transitioning from nursing homes to communities of their

choice. The majority of community reintegration program research has focused on individual functional skill development as delivered by professionals. This new social action program, based on

disability studies research and disability narratives, targets four major unmet needs for: (1) sustained

networking with peers, mentors, and activists who have disabilities who can share experiences and

strategies; (2) joining meaningful social reference groups, especially those in which disability identity, pride, community membership, and collective activism are valued and positively modeled; (3)

using information technologies, such as computers and the Internet, to gain knowledge, socialize,

and network with identified communities of choice; and (4) gaining access to consultative services

and resources to access these technologies and the community environment over time. The project

uses a participatory action research collaboration approach to create and research the impact of this

social action program on long-term community living, participation, quality of life, and individual

and collective identity development processes and outcomes. The project involves a collaborative

partnership to effect social change among two Centers for Independent Living, two departments

within the Joint Doctoral Program in Disability Studies at the University of Illinois/Chicago (UIC),

the Center on Disability Research at UIC, and state agencies and disability organizations involved in

community reintegration and resource allocation to support community living.
Independent Living and Community Integration 4-19

Field-Initiated Projects (FIPs)

Illinois

The Development of a Valid System for Measuring Rehabilitation

Service Outcomes

Foundation for Rehabilitation Education and Research

1835 Rohlwing Road, Suite E

Rolling Meadows, IL 60008

fongchan@aol.com

Principal Investigator: Fong Chan, PhD, CRC; Stanford E. Rubin, EdD, CRC, 618/536-7704

Public Contact: Fong Chan, PhD, CRC, 847/818-1967; Fax: 847/394-2172

Project Number: H133G990137

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 99 $146,373; FY 00 $147,958; FY 01 $149,881

Abstract: This project develops an easy-to-use, reliable, and valid evaluation system called the

Rehabilitation Outcome Measurement and Evaluation System (ROMES). This standardized system

addresses: (1) vocational status, functional capacity, and quality of life; (2) rehabilitation outcomes

that maximize provider/consumer involvement in setting rehabilitation goals; and (3) how to measure rehabilitation gains in the specified competency areas. These competency areas include independent living, social and psychological functioning, and work. The research product is primarily

targeted to meet the program evaluation needs of people with disabilities, rehabilitation service

providers, and managers/administrators in state VR as well as those involved in private rehabilitation.
4-20 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Kansas

Independent Living for People with Psychiatric Disabilities: Using

Contextual Cues to Remove Environmental Barriers

University of Kansas Medical Center

Occupational Therapy Education

3033 Robinson Building

3901 Rainbow Boulevard

Kansas City, KS 66160-7602

tbrown@kumc.edu

Principal Investigator: Catana Brown, PhD

Public Contact: 913/588-7195; Fax: 913/588-4568

Project Number: H133G000152

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 00 $148,765; FY 01 $136,107

Abstract: This project examines an intervention that reduces environmental barriers by teaching

contextual cues. The grocery store, an exemplar of a complex community-based environment, is the

focus, and grocery shopping is the designated skill. The hypotheses tests the effectiveness of the

intervention in improving knowledge, performance, and application of grocery shopping skills, and

the relationship of cognition to skill acquisition. Individuals with psychiatric disabilities from five

community-based sites are randomly assigned to either the grocery shopping intervention or a waitlist control group. Outcome measures address all levels of skill acquisition: knowledge, performance

(including generalizability and maintenance), and application of grocery shopping skills. In addition,

measures of basic cognitive processes and executive functioning determine whether cognition

predicts skill acquisition. Consumer collaborators are included in all aspects of the program. The

findings provide direction for enhancing this and other skills training interventions.
Independent Living and Community Integration 4-21

Field-Initiated Projects (FIPs)

Louisiana

Louisiana’s Self-Determination Research Project

Louisiana State University Health Sciences Center

Human Development Center

1100 Florida Avenue, Building 119

New Orleans, LA 70119

jeverson@lsuhsc.edu

http://www.hdc.lsumc.edu

Principal Investigator: Jane M. Everson, PhD

Public Contact: 504/942-8188; Fax: 504/942-5908

Project Number: H133G990169

Start Date: April 1, 1999

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $149,999; FY 00 $150,000; FY 01 $150,000

Abstract: This project investigates short- and long-term effects that self-determination instruction,

participation in a Youth Leadership Forum (YLF), or both have on the self-determination abilities,

IEP involvement, and adult outcomes of adolescents with disabilities. The curricula and the YLF are

based on these premises: (1) self-determination is a critical factor for successful transition into

adulthood, (2) individuals with disabilities do not easily achieve desired adult outcomes because they

generally do not possess self-determination skills, and (3) self-determination instruction improves

these students’ adult outcomes. The target population for this study is adolescents with disabilities

attending high schools throughout Louisiana, beginning in their junior year, until one year after

exiting high school.
4-22 Independent Living and Community Integration

 Field-Initiated Projects (FIPs)

Michigan

Identifying Social Integration Needs During Transition to Adulthood

Following Traumatic Brain Injury

University of Michigan

Department of Physical Medicine and Rehabilitation

Box 0718

1500 East Medical Center Drive

Ann Arbor, MI 48109-0718

sethaw@umich.edu

Principal Investigator: Seth Warschausky, PhD

Public Contact: Joan Zaccagnini, 734/936-7052; Fax: 734/936-7048

Project Number: H133G000038

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $148,363; FY 01 $136,590

Abstract: This study identifies specific social rehabilitation and integration needs of persons with

TBI. Social functioning is a core domain of quality-of-life, a key predictor of well-being, and is

critical to the development of independence. Earlier work has demonstrated that persons with TBI

are at risk for social isolation and impaired social problem-solving (SPS) skills including the ability

to be assertive in achieving desired social outcomes in school, work, and other settings. SPS skills

have been shown to be powerful predictors of social success and integration in noninjured individuals. The specific aims of this study are to: (1) examine SPS skills as key predictors of social integration and quality of life in a sample of young adults with TBI; (2) examine the mediating role of SPS

in the relationships between age of onset of TBI and outcome variables; (3) examine predictors of

SPS following TBI; and (4) examine SPS following childhood TBI as predictors of social integration

and subjective well-being in adulthood.
Independent Living and Community Integration 4-23

Field-Initiated Projects (FIPs)

Michigan

Quality of Life for Persons with a Spinal Cord Injury: A Qualitative

Longitudinal Study

Wayne State University

Rehabilitation Institute of Michigan

261 Mack Boulevard, Room 520

Detroit, MI 48201

chduggan@excite.com

Principal Investigator: Colette Duggan, PhD

Public Contact: 313/745-1070; 313/745-9735; Fax: 313/966-7502

Project Number: H133G990219

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $148,565; FY 00 $148,565; FY 01 $148,565

Abstract: This qualitative, longitudinal investigation increases understanding of the experience of

quality of life (QOL) of people with SCI. The study focuses on changes in self-rated QOL from

before injury (retrospectively) through 30 months post-SCI. Project objectives: (1) to collect longitudinal data on QOL as experienced by various groups of people with SCI, based on multiple unstructured interviews starting soon after injury; (2) to analyze this information with specific attention to

subjective QOL differences between groups, changes, and consistencies over time, and the interplay

of internal factors such as personality and the will to live, with external factors such as neurological

recovery, equipment, and resources; and (3) to disseminate information on QOL after SCI to consumers, professionals, and other concerned audiences. Analyses of the data address a number of

specific hypotheses on the process of change in subjective QOL.
4-24 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Minnesota

National Study on the Impact of SSI Redetermination of 18-Year-Old

Youth with Disabilities on Employment, Independent Living, and

Community Participation Outcomes

University of Minnesota

Institute on Community Integration

102 Pattee Hall

150 Pillsbury Drive SE

Minneapolis, MN 55455-0223

johns006@umn.edu

Principal Investigator: David R. Johnson, PhD, 612/624-1062

Public Contact: Ellie Emanuel, 612/624-1143; Fax: 612/624-9344

Project Number: H133G000201

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $149,988; FY 01 $149,946

Abstract: This project performs four specific types of studies and analyses on the impact of SSI

redetermination: (1) a post-school outcome survey of SSI recipients and nonrecipients: a study in

five or six states on the employment, independent living, and community participation of young

adults with disabilities, including those who have successfully achieved redetermination at age 18,

compared to those whose participation in the program has ceased; (2) individual and family case

studies: in-depth case studies in three or four states, to understand better the impact of SSI redetermination policies and practices on individuals and families; (3) research integration/synthesis: previous

post-school outcome, policy, and service delivery research studies and reports focusing on SSA

policies and practices, reviewed, synthesized, and reported in a comprehensive monograph; and (4)

an expert panel/best practices review: “promising” or “best” practices related to SSA’s SSI redetermination policies and practices, identified and reviewed.
Independent Living and Community Integration 4-25

Field-Initiated Projects (FIPs)

New Hampshire

Survey of Home Ownership Nationwide

University of New Hampshire

Institute on Disability

7 Leavitt Lane, Suite 101

Durham, NH 03824

david.hagner@unh.edu

http://www.alliance.unh.edu

Principal Investigator: David Hagner, PhD

Public Contact: 603/862-4320; Fax: 603/862-0556

Project Number: H133G000034

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 00 $149,999; FY 01 $149,999

Abstract: This project systematically investigates the quality-of-life outcomes of home ownership

for people with severe disabilities, and the personal, service system, financial system, and support

network variables associated with achieving and maintaining successful home ownership. Five

interrelated studies are conducted: (1) a home ownership outcome study, using in-person structured

interviews across six states, conducted by individuals with disabilities, in collaboration with the

Temple University Institute on Disabilities, to examine the effect of home ownership on quality-oflife and quality-of-service provision; (2) a study of facilitating and inhibiting factors in home ownership, based on telephone interviews with disability service system personnel, financial personnel,

and informal support persons assisting the successful and unsuccessful home seekers identified in

the outcome study above, in collaboration with the UNH Center for Survey Research; (3) an investigation of the predictors of mortgage company underwriting decisions to test the effect of differences

in disability, assistance, and income sources on mortgage lending; (4) an intensive case study of

selected home owners to examine the personal meaning of home ownership and the process of

overcoming barriers; and (5) a follow-along study of the variables associated with long-term success

by successful home owners.
4-26 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

New Jersey

Improving the Health Care Encounter for Persons Who Have

Developmental Disabilities

Matheny School and Hospital

P.O. Box 339

Peapack, NJ 07977-0339

research@matheny.org

Principal Investigator: Kenneth L. Robey, PhD

Public Contact: 908/234-0618; Fax: 908/234-0963

Project Number: H133G010153

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 01 $125,515

Abstract: This project develops an integrated set of methodologies and materials to improve the

quality of the health care encounter for persons who have developmental disabilities, by increasing

the readiness of medical students and other health care students to work with this population. During

their training, physicians and other health care professionals typically receive little exposure, either

in lecture or clinical settings, to persons with developmental disabilities. Consequently, many enter

their professions with little understanding of the needs and potentials of persons with developmental

disabilities, and unfortunately, with varying degrees of willingness and comfort when serving those

individuals. The project uses a computer-based module and standardized patient profile to train

health care students regarding developmental disability. The module has a particular focus on communication between the health care professional and the person with a developmental disability. This

work capitalizes on The Matheny School’s extensive experience as a rotation/orientation site for

University of Medicine and Dentistry of New Jersey (UMDNJ) medical students, nursing students,

dietary students, and students in the therapies.
Independent Living and Community Integration 4-27

Field-Initiated Projects (FIPs)

New York

Effectiveness of a System That Includes Computer-Based Monitoring

in Promoting Care Among Older Persons with Physical Disabilities

State University of New York (SUNY) at Buffalo

515 Kimball Tower

Buffalo, NY 14214

wmann@hp.ufl.edu

http://cat.buffalo.edu

Principal Investigator: William C. Mann, OTR, PhD

Public Contact: 800/628-2281

Project Number: H133G990086

Start Date: August 1, 1999

Length: 36 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 99 $150,000; FY 00 $150,000; FY 01 $150,000

Abstract: This goal of this study is to determine the effectiveness of using a computer-based system

of services between live-alone older people with physical disabilities and health care professionals.

The system, which includes Internet-based communication (including audio and video), is used to:

(1) monitor daily self-care needs, (2) identify the need for a home health care visit, (3) suggest selfadministered interventions, and (4) provide information and training to enhance daily functional

performance. The study employs a randomized clinical trial design with 100 older people with

physical disabilities from Western New York, an evaluation of assistive device use among older

rehabilitation patients, an evaluation of assistive device use among older renters, and an environmental skill-building program for family caregivers of dementia patients. Secondarily, the study determines: (1) the costs associated with placement of computer technology and Internet capacity in the

homes of frail elders and instruction in the self-care monitoring program, (2) the reliability of selfreport functional assessment using computer technology in comparison to in-home observation of

self-care performance, and (3) the acceptability of computer monitoring and utilization of intervention components.
4-28 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

New York

Evaluating Independent Living Outcomes for Blind and Visually

Impaired Older People: Development of a Nationally Standardized

Minimum Dataset (NSMD)

American Foundation for the Blind

11 Penn Plaza, Suite 300

New York, NY 10001

corinne@afb.net

http://www.afb.org

Principal Investigator: Corinne Kirchner, PhD; Alberta L. Orr, MSW

Public Contact: 212/502-7640; Fax: 212/502-7773

Project Number: H133G010183

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $150,000

Abstract: This project develops and pilot tests a Nationally Standardized Minimum Dataset

(NSMD), through which research can be conducted on the outcomes of services for older persons

with visual impairments. This population has traditionally been underserved by public programs

including the VR system and the aging network. The NSMD is piloted in several agencies throughout the country and includes: (1) pre-service consumer data, (2) a post-service consumer profile, (3)

a functional outcomes assessment, and (4) a consumer satisfaction and perceived outcome survey.

Public agency administrators and staff are the primary audience. Secondary target audiences are

private agencies for the blind, centers for independent living, and consumers.
Independent Living and Community Integration 4-29

Field-Initiated Projects (FIPs)

Ohio

A Family Intervention Following Traumatic Brain Injury in Children

Children’s Hospital Medical Center

Pediatric Rehabilitation

3333 Burnet Avenue

Cincinnati, OH 45229-3039

wades0@chmcc.org

Principal Investigator: Shari L. Wade, PhD, 513/636-7480

Public Contact: Fax: 513/636-7360

Project Number: H133G990069

Start Date: April 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $149,008; FY 00 $147,765; FY 01 $147,509

Abstract: This project operates an outpatient intervention program that studies the impact on

caregiver functioning of moderate to severe TBI in children. It seeks to reduce psychological disability in caregivers, thereby enabling the family to support the child’s recovery from TBI in an optimal

way, through development and testing of an intervention adapted from established problem-solving

and communications skills training protocols that have been used successfully with families of

children with chronic illnesses and behavior disorders. The study is a randomized, controlled trial

comparing the effects of standard medical and psychosocial care to standard care plus the individualized problem-solving and communication intervention on the following outcomes: (1) injury-related

stress and burden, and (2) caregiver psychological distress. Participants include the families of

children, aged 6-14, who have experienced a moderate to severe TBI between 6 and 18 months prior

to study participation. Families are randomly assigned to the standard care or problem-solving/

communication skill groups. Group differences are examined using a multivariate approach to

analysis of covariance, controlling for injury severity, age, gender, sociodemographic status, and

time since injury. The hypothesis is that better problem-solving and communication skills means less

injury-related stress and better caregiver functioning among the intervention group compared to the

standard care group.
4-30 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Ohio

Neuropsychological Functioning and Psychosocial Adjustment in

Adolescents with Spina Bifida and NLD

Children’s Hospital Medical Center

Division of Psychology

3333 Burnet Avenue

Cincinnati, OH 45229-3039

robert.ammerman@chmcc.org

Principal Investigator: Robert T. Ammerman, PhD

Public Contact: 513/636-8209; Fax: 513/636-5987

Project Number: H133G000134

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 00 $147,750; FY 01 $149,958

Abstract: This study examines the relationship between type and severity of neuropsychological

impairment, in particular the nonverbal learning disability (NLD) profile, and psychosocial functioning in adolescents with spina bifida. Adolescents with spina bifida exhibit a variety of

neurocognitive deficits that are thought to undermine psychosocial adjustment. Between 40 and 50

percent have neuropsychological impairments indicative of NLD, which is strongly associated with

poor social adjustment and internalizing behavior problems (e.g., depression). In general, adolescents with spina bifida display problems in behavioral, social, and personality adjustment, although

there is considerable variability in this population. Primary goals of the study are to: (1) identify

differential patterns of psychosocial management at different points in adolescent development; (2)

determine the predictive utility of the NLD profile to subsequent psychosocial functioning and

determine if psychosocial problems increase with age in those with NLD; and (3) test whether family

functioning moderates the association between neuropsychological impairment and psychosocial

adjustment. Results from this study elucidate causal relationships between neuropsychological

impairment and psychosocial functioning in adolescents with spina bifida, delineate risk factors that

contribute to early identification and the design of effective interventions, and reveal patterns of

psychosocial functioning across age in adolescents.
Independent Living and Community Integration 4-31

Field-Initiated Projects (FIPs)

Oregon

Getting A Life: Research on Individual and Person-Centered Planning

Processes in Oregon

University of Oregon

Educational and Community Supports

1235 University of Oregon

Eugene, OR 97403-1235

ralbin@oregon.uoregon.edu

Principal Investigator: Richard Albin, PhD

Public Contact: 541/346-2464; Fax: 541/346-5517

Project Number: H133G010167

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $149,999

Abstract: This project researches the relative merits of forms of Person-Centered Planning (PCP),

including the Individualized Support or Service Plan (ISP) system, Essential Lifestyle Planning

(ELP), and others. Activities include the following three studies: (1) surveying the features of individual planning systems used in Oregon at the start of the project and in Year 3 after large scale

systems change efforts have occurred; (2) creating a causal-comparative 3-by-2 factorial group

design, where study participants are assigned to groups based on whether they are experiencing a

defined set of significant life challenges and the types of service planning they receive, with groups

balanced or blocked based on demographic variables; and (3) creating a multiple-baseline single

subject design in which the outcomes of three service planning approaches (ISPs, ELPs, and PCP)

are compared related to specific outcomes for six individuals who experience challenging behavior.
4-32 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Oregon

Men’s Personal Assistance Services Abuse Research Project

Oregon Health and Science University

Center for Self-Determination

3608 Southeast Powell Boulevard

Portland, OR 97202

powersl@ohsu.edu; mcneffe@ohsu.edu

http://selfdetermination.ohsu.org

Principal Investigator: Laurie Powers, PhD

Public Contact: Lizzi McNeff, 503/232-9154, ext. 150; Fax: 503/232-6423

Project Number: H133G010040

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $150,000

Abstract: This project focuses on prevention and management of personal assistance service (PAS)

abuse carried out against men with disabilities who are living independently in the community, who

are abused by their formal or informal PAS providers. It increases identification, assessment, and

response by: (1) developing a knowledge base regarding men’s definitions, perceptions, and experiences of PAS abuse; (2) designing a culturally sensitive screening and assessment approach that can

be used by men, Centers for Independent Living (CILs), and health and disability services providers

to identify PAS abuse; and (3) identifying culturally appropriate response strategies that can be used

by men, CILs, and health and disability services providers to prevent and manage PAS abuse. The

project is collaboratively conducted by the Center on Self-Determination at the Oregon Institute on

Disability and Development of Oregon Health Sciences University, the World Institute on Disability,

and Berkeley Planning Associates.
Independent Living and Community Integration 4-33

Field-Initiated Projects (FIPs)

Texas

The Transition of Pediatric Burn Survivors into Adulthood

University of Texas Medical Branch

301 University Boulevard

Galveston, TX 77555-0189

wmeyer@utmb.edu

Principal Investigator: Walter J. Meyer, III, MD

Public Contact: 409/747-8355; Fax: 409/747-8352

Project Number: H133G990052

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $150,000; FY 00 $150,000; FY 01 $150,000

Abstract: This study examines the long-term adjustment of pediatric burn survivors as they undergo

the transition from adolescence and burn induced dependency to the independence and autonomy of

adulthood. It is hypothesized that individuals burned as children have increased difficulty with the

transition from home to independent living. They expect that for these individuals, psychosocial

difficulties with the transition to adulthood increase with larger burn size. The study completes a

baseline assessment of 150 individuals ages 18 to 26, burn size 30 percent or greater, and at least 2

years postburn, who have been treated at the Shriners Burns Hospital as children. This assessment

includes a physical disability determination and intelligence testing as well as interviews focusing on

psychiatric disorder, psychosocial adjustment, living arrangement, and family relationships. The data

is analyzed against age, with special attention to gender, burn size and viability, age of burn, physical

handicaps, intelligence, and initial family environment.
4-34 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Texas

Self-Esteem and Women with Physical Disabilities

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

3440 Richmond Avenue, Suite B

Houston, TX 77046

mnosek@bcm.tmc.edu; rhughes@bcm.tmc.edu

http://www.bcm.tmc.edu/crowd

Principal Investigator: Rosemary Hughes, PhD

Public Contact: 713/960-0505; Fax: 713/961-3555

Project Number: H133G990039

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Donna Nangle

NIDRR Funding: FY 99 $149,997; FY 00 $149,961; FY 01 $150,000

Abstract: The purpose of this study is the development of a greater understanding of self-esteem in

women with physical disabilities. The study examines the effectiveness of a psycho-educational,

peer-facilitated workshop intervention designed to enhance the self-esteem of women with physical

disabilities. The goal is to increase self-esteem while concurrently learning about ways to build

relationship skills. Objectives include understanding the impact of gender and disability role socialization, increasing self-awareness and self-understanding, increasing self-nurturance, understanding

health relationships and boundaries, learning about communication skills and consumer advocacy,

and integrating and applying skills. Peer leaders facilitate the program. The project also documents

and widely disseminates information about the self-esteem of women with physical disabilities, to

women with disabilities, independent living counselors, and mental health professionals.
Independent Living and Community Integration 4-35

Field-Initiated Projects (FIPs)

Virginia

Middle School Phonemic Awareness Study

George Mason University

Krasnow Institute for Advanced Study

MS #2A1

Fairfax, VA 22030-4444

bgiven@gmu.edu

http://mason.gmu.edu/~bgiven

Principal Investigator: Barbara Given, PhD

Public Contact: 703/993-4406; Fax: 703/993-4325

Project Number: H133G000142

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $149,920; FY 01 $149,957

Abstract: This study investigates the effects of an intensive, acoustically modified, computer-driven

academic intervention called Fast ForWord and Step 4word (formerly known as Fast ForWord II)

through an after-school intervention project for middle-school students with recepting reading and

language deficits. A large body of research identifies difficulty with phonological processing as the

fundamental deficit for many children with reading and language impairments, so this project concentrates on: (1) receptive language, (2) phonemic awareness, (3) word attack skills, (4) word identification, and (5) reading comprehension. Matched groups of students use a computer-driven phonics

and reading program called Lexia, which ensures that gains made from training with processed

speech result from sound (distinguished speech sounds) rather than from vision (time spent concentrating on a computer screen). Students in the control group are provided homework assistance.

Electroencephalographic (EEG) recordings and psychometric evaluations are conducted prior to the

intervention, post-intervention, and again approximately six months later. These data are used to

evaluate the effectiveness of phonological awareness training in comparison to academic skill development and homework tutoring. As a tangential consideration, students’ modality preferences are

correlated with computer trials to investigate the relationship between modality preference and

students’ level of engagement with the computer-driven exercises. These results are expected to

provide data about who would engage in the computer activities persistently.
4-36 Independent Living and Community Integration

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Colorado

Pocket Compass: A Palmtop Computer-Based Intelligent Aid for

Individuals with Mental Retardation to Increase Independence and

Self-Determination in Decision Making

AbleLink Technologies, Inc.

1879 Austin Bluffs Parkway, Suite 100

Colorado Springs, CO 80918

steve@assess.net

http://www.ablelinktech.com

Principal Investigator: Daniel K. Davies

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: ED-01-PO-3664

Start Date: September 17, 2001

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $60,000

Abstract: This project helps individuals with mental retardation navigate the cognitive process of

making appropriate decisions by developing and evaluating Pocket Compass, a portable software

system that uses an expert-system approach combined with intelligent audio and visual cues.

Achieving greater independence and self-determination for individuals with mental retardation

depends upon the ability to make appropriate decisions independently. This device should be useful

in the acquisition of decision-making skills relating to community involvement in areas such as

work, recreation, and independent living where available choices can be rationally predicted. Research activities include: (1) determining the user interface, technical, and functional requirements of

the system; (2) designing and building a software prototype on the Pocket PC platform; and (3)

conducting a pilot study to evaluate the utility of the system for improving independence and selfdetermination in decision making for adults with mental retardation.
Independent Living and Community Integration 4-37

Small Business Innovative Research (SBIR), Phase I

Colorado

Pocket Voyager: Making Palmtop Computers Accessible to Individuals

with Mental Retardation

AbleLink Technologies, Inc.

1879 Austin Bluffs Parkway, Suite 100

Colorado Springs, CO 80918

steve@assess.net

http://www.ablelinknet.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: ED-01-PO-3665

Start Date: September 17, 2001

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $60,000

Abstract: This project researches and develops Pocket Voyager, a specially designed multimedia

application to make the features and programs on palmtop computers more independently accessible

to individuals with mental retardation. Palmtop computers are becoming an increasingly common

platform for AT developers, in part because of their portability, integrated touch-screens, multimedia

capabilities, removable storage options, and PC slot accessories that extend the capacities of the

system. Also, mainstream production makes them a more desirable development platform than

specially designed hardware units, with lower costs due to high-volume production runs and significantly more research and development attention. Software products are being developed that are

designed to be used by individuals with mental retardation in areas such as communication, schedule

maintenance, and task completion, but great difficulty is encountered when a user exits the closed

environment of a specialized software application and must use the palmtop computer’s interface to,

for example, launch another desired application. AbleLink builds upon methodologies used in

developing its current Voyager desktop application for Windows desktop computers. The project

involves determining the functional, interface, and technical requirements for such a system, building a software prototype, and then evaluating that prototype in a pilot study to assess its utility for

making palmtop computers more independently accessible to individuals with mental retardation.

The prototype utilizes multimedia and error minimization methodologies to make other software

programs and features on the computer more accessible.
4-38 Independent Living and Community Integration

Small Business Innovative Research (SBIR), Phase I

North Carolina

Positive Solutions: A Web-Based Program for Improving Challenging

Behaviors

Positive Behavioral Solutions, Inc.

15 Walnut Lane

Fletcher, NC 28732

dwestling@home.com

Principal Investigator: David Westling

Public Contact: 828/681-1681

Project Number: ED-01-PO-3726

Start Date: September 17, 2001

Length: 6 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $59,825

Abstract: Positive Solutions is a web-based data collection, storage, retrieval, and analysis program

to assist agencies and individuals concerned with improving challenging behaviors such as selfinjury, aggression, and disruption. The program, accessible through the Internet, is designed to assist

in conducting functional behavior assessments and in providing information related to developing

positive interventions.
Independent Living and Community Integration 4-39

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

California

Role Models for Youth with Disabilities: Career Exploration for Youth

in Transition

InfoUse

2560 Ninth Street, Suite 216

Berkeley, CA 94710-2566

info_use@infouse.com

http://www.infouse.com

Principal Investigator: Lita Jans, PhD, 510/549-6509

Public Contact: 510/549-6520 (V); 510/549-6523 (TTY); Fax: 510/549-6512

Project Number: ED-01-CO-0127

Start Date: September 1, 2001

Length: 24 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 01 $150,000

Abstract: In this project InfoUse develops a series of multimedia products featuring adults with

disabilities as role models for transition-age students with disabilities. The products, developed for

students, their parents, and professionals who work with them, provide students with both an ongoing opportunity for career awareness and exploration, and an aid to eventual career selection. The

multimedia products depict adult role models, including people with different disabilities, from

different ethnic groups, who are working in a range of careers that require a variety of postsecondary

education and vocational preparation. The materials include a web site, CD-ROM, videos, and

curriculum guide.
4-40 Independent Living and Community Integration

Small Business Innovative Research (SBIR), Phase II

Colorado

NutraNet: An Internet-Based, Self-Directed Multimedia Software

System for Nutritional Education, Planning, and Implementation for

Individuals with Mental Retardation

AbleLink Technologies, Inc.

1879 Austin Bluffs Parkway, Suite 100

Colorado Springs, CO 80918

steve@assess.net

http://www.ablelinktech.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: ED-01-CO-0126

Start Date: September 17, 2001

Length: 24 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $150,000

Abstract: This project develops a set of multimedia software modules to provide opportunities for

greater independence and self-direction in nutrition planning, grocery shopping, and meal preparation for individuals with mental retardation and other significant cognitive disabilities. For most

Americans, understanding, planning, and implementing healthy daily diets is a multifaceted and

potentially confusing process. The cognitive challenges faced by people with mental retardation

create even greater barriers in understanding the complexity of healthy diets, including nutritional

concepts such as the food groups, caloric values, saturated fats, cholesterol, daily recommended

allowances, comparison grocery shopping, and food portion sizes. This has resulted in a high level of

dependency on others in meal planning and execution, and high rates of weight-related health problems for people with mental retardation. Phase I addressed the problems of dependency on others

and healthy meal planning by developing and testing NutraNet, an Internet-based multimedia software system for independent and self-directed menu planning by individuals with mental retardation.

Menus created with NutraNet by individuals with mental retardation were finished with significantly

greater independence (p <.001) than those created by the same individuals using their current menu

planning form. Additionally, the NutraNet menus were significantly better at meeting the recommended minimum daily requirements of the five food groups (p <.003) and in producing lowercholesterol diets (p <.004). Phase II builds on these results by identifying and developing additional

nutritional health-related technology tools designed to be more independently useable by nonreading students and adults.
Associated Disability Research Areas

Related disability research emphasizes knowledge areas that are cross-cutting and

essential to the support and refinement of disability research generally. The common

theme linking disability statistics, outcome measures, and the emerging fields of

disability studies, rehabilitation science, and disability policy research is that they all

provide essential frameworks and building blocks for the research and address

important issues in a meaningful way.

Contents

Rehabilitation Research and Training Centers (RRTCs) ...................................................................... 1

Disability and Rehabilitation Research Projects .................................................................................. 5

Field-Initiated Projects (FIPs) .............................................................................................................. 6

Associated Disability Research Areas 5-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Arizona

American Indian Rehabilitation Research and Training Center

Arizona University Affiliated Programs

Institute for Human Development

Northern Arizona University

Box 5630

Flagstaff, AZ 86011-5630

priscilla.sanderson@nau.edu

http://www.nau.edu/~ihd/airrtc

Principal Investigator: Richard Carroll, PhD , 928/523-7033

Public Contact: Priscilla Lansing Sanderson, Project Director, 928/523-4791 (V); 928/523-1695

(TTY); Fax: 928/523-9127

Project Number: H133B980049

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 98 $595,000; FY 99 $605,000; FY 00 $605,000; FY 01 $739,500

Abstract: This Center, in a collaboration that includes the Consortia of Administrators for Native

American Rehabilitation (CANAR) and other Rehabilitation Research and Training Centers, develops, implements, and conducts research and training activities around four core areas. Eight research

projects and six training projects focus on: (1) investigating and analyzing existing disability and

employment data, and recommending methodology for planning and evaluating employment services for American Indians and Alaska Natives; (2) recommending successful strategies to improve

employment outcomes, including existing employment and VR service practices for American

Indians and Alaska Natives with disabilities on or off reservations; (3) developing and evaluating

innovative and culturally appropriate VR services for the employment of American Indians and

Alaska Natives; and (4) disseminating results of the data collection and evaluation of model employment services to a range of relevant audiences, using appropriate accessible formats. Consultation

with researchers, CANAR, and the training team helps develop a dissemination method that is

accessible and acceptable for each respective target community. Information and resources are

developed and disseminated to providers, tribal and state vocational rehabilitative agencies, consumers, and Regional Continuing Education Programs. This project participates in the NIDRR Scholars

program, providing motivated undergraduates with internship experience in disability research.
5-2 Associated Disability Research Areas

Rehabilitation Research and Training Centers (RRTCs)

California

Disability Statistics Rehabilitation Research and Training Center

University of California/San Francisco

3333 California Street, Room 340

San Francisco, CA 94118

distats@itsa.ucsf.edu

http://dsc.ucsf.edu

Principal Investigator: Mitchell P. LaPlante, PhD

Public Contact: Barbara Wenger, Information Specialist, 415/502-5210 (V, General Information);

415/502-5217 (V, Wenger); 415/502-5216 (TTY); Fax: 415/502-5208

Project Number: H133B980045

Start Date: December 1, 1998

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 98 $700,000; FY 99 $750,000; FY 00 $700,000; FY 01 $700,000

Abstract: The Center conducts research in the demography and epidemiology of disability including

costs, employment statistics, health and long-term care statistics, and statistical indicators. Statistical

information is disseminated through published statistical reports and abstracts, journals, professional

presentations, and a publications mailing list. Training activities and resources (such as a predoctoral

program) disseminate scientific methods, procedures, and results to both new and established researchers, policy-makers, and other consumers, and assist them in interpreting statistical information.

A National Disability Statistics and Policy Forum is conducted periodically to foster dialogue between people with disabilities and representative organizations, researchers, and policy-makers.
Associated Disability Research Areas 5-3

Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Policies Affecting

Families of Children with Disabilities

University of Kansas

Beach Center on Disability

Haworth Hall, Room 3136

1200 Sunnyside Avenue

Lawrence, KS 66045-7534

turnbull@ku.edu

http://www.beachcenter.org

Principal Investigator: Ann Turnbull, EdD; H. R. Turnbull, LLM

Public Contact: H. R. Turnbull, LLM, 785/864-7600; Fax: 785/864-7605

Project Number: H133B980050

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 98 $650,000; FY 99 $650,000; FY 00 $650,000; FY 01 $650,000

Abstract: This project assesses policies and services and their impact on families’ quality of life,

focusing on four priorities: (1) developing an analytical framework for policy and service analysis;

(2) developing measurement tools that apply state-of-the-art legal and policy analysis methodologies

to the assessment of policies, service systems, and family outcomes; (3) identifying impacts of

partnership (including interagency collaboration and coordination) on family outcomes; and (4)

conducting research with families from diverse backgrounds in several communities and states

(Kansas, Louisiana, and North Carolina). This research agenda is composed of five comprehensive

training projects, six dissemination projects, and five technical assistance projects. Training activities

include: (a) pre-service training and the preparation of three textbooks; (b) in-service training that

helps service providers and families form community coalitions using the measurement toolkit; and

(c) sponsorship of an international state-of-the-science conference. Dissemination activities include:

(a) networking with federal agencies; (b) developing and disseminating the measurement toolkit, six

users’ manuals, and a management information software package; and (c) publishing articles in peerreviewed newsletters, research briefs, fact sheets, a Web site, and a newsletter. Technical assistance

focuses on: (a) enhancing federal and state policies; (b) conducting summer institutes with state-local

partners on policy and service analyses; and (c) developing partnerships with federal agency liaisons,

grantees, and key family and professional organizations to mentor them in using the results of project

research to enhance policies and services.
5-4 Associated Disability Research Areas

Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center on Measuring

Rehabilitation Outcomes

Boston University

Sargent College of Health and Rehabilitation Sciences

635 Commonwealth Avenue

Boston, MA 02215

rmonarch@bu.edu

http://www.bu.edu/cre/rehaboutcomes

Principal Investigator: Alan M. Jette, PhD , 617/353-2704

Public Contact: Roseanne Monarch, 617/353-1297; 617/353-3277; Fax: 617/358-1355

Project Number: H133B990005

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $699,736; FY 00 $699,868; FY 01 $699,745

Abstract: This Center develops new, more effective outcomes measurement tools and applies these

tools to determine the effectiveness of medical rehabilitation interventions. Research components

include: (1) identifying gaps in existing outcome measures and developing new instruments that

address these gaps as part of a rehabilitation outcomes system; (2) critically evaluating the newly

developed instruments against tools currently in use; (3) implementing the newly developed outcome

instruments across impairment groups and across rehabilitation settings to assess their feasibility,

responsiveness, and validity; (4) investigating the extent to which specific rehabilitation interventions affect outcomes following the onset of a stroke; and (5) applying modern psychometric techniques to develop dynamic outcome instruments that can also be used with individual patients in a

clinical setting. Several components have been designed to enhance the translation of research

findings into rehabilitation practice and to provide stakeholders with the opportunity to provide input

into the Center including surveys of the use of medical rehabilitation outcomes data, consensus

conferences, institutes, fellowships, a Web site, and a consumer guide to choosing postacute care

services.
Associated Disability Research Areas 5-5

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Center on Emergent Disability: A National Study on the Changing

Impact of Major Demographic, Health, Social, and Economic Trends

on the Manifestation of Disability

University of Illinois/Chicago

Department of Disability and Human Development

1640 West Roosevelt Road

Chicago, IL 60608-6904

gfujiura@uic.edu

http://www.uic.edu/depts/idhd/ced

Principal Investigator: Glenn T. Fujiura, PhD

Public Contact: 312/413-1977; Fax: 312/413-4098

Project Number: H133A990017

Start Date: October 1, 1999

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 99 $250,000; FY 00 $250,000; FY 01 $250,000

Abstract: The Center on Emergent Disability at the University of Illinois/Chicago is a national

research effort that seeks to characterize the changing impact of major demographic, health, social,

and economic trends on the manifestation of disability in America. Core activities of the Center

include: (1) state level analysis of changes in the etiology of disability through a systematic canvas

and analysis of state public health surveillance systems; (2) evaluation of the implications of change

from the perspective of implications for service delivery at the local level in conjunction with statewide disability planning councils in Florida, Illinois, New Jersey and Texas; (3) study of political

identity and coalition building with these constituencies and their relationships to the development of

policies in state human services infrastructure; (4) a series of secondary analyses of national health

and economic data sets to profile the character of changes in the population of Americans with

disability; and (5) an integrated framework for monitoring and reporting medical and diagnostic

research on “newly emergent” conditions. The goal is to develop a model of evolving risk and its

impact on population change, state-wide agenda formation, planning, policy choice, and implementation against the backdrop of emergent conceptions of disability.
5-6 Associated Disability Research Areas

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

Arkansas

The Empowerment Project: Promoting Equality for People with

Disabilities Through Electoral Participation

University of Arkansas/Fayetteville

Fulbright Institute of International Relations

722 West Maple

Fayetteville, AR 72701

kays@uark.edu

http://www.uark.edu/dispol

Principal Investigator: Kay Schriner, PhD , 501/575-6417

Public Contact: 501/575-2006; Fax: 501/575-7402

Project Number: H133G990188

Start Date: August 15, 1999

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 99 $145,458; FY 00 $149,973; FY 01 $149,400

Abstract: The Empowerment Project is a three-year program of research and dissemination activities that address and reduce a variety of barriers to voting. People with disabilities constitute the

largest minority group in the United States, but their voice in American democracy is faint. The

outcomes of this project include: new knowledge based on comparative legal analyses of voting

rights legislation for racial minorities, women, and people with disabilities; a study of implementation of the National Voter Registration Act (NVRA) by disability service agencies; strategies for

improving implementation of the NVRA; new knowledge regarding the effects of state-level differences in election practices on the electoral participation of people with disabilities; a study of the

needs and preferences of people with disabilities with respect to registration and voting practices;

strategies for use by state and local election officials to promote accessibility in registration and

voting; and a National Summit on Electoral Participation by People with Disabilities to promote the

use of project results and products.
Associated Disability Research Areas 5-7

Field-Initiated Projects (FIPs)

California

Disability Rights and the Independent Living Movement: The

Formative Years Nationwide

University of California/Berkeley

The Bancroft Library

UC Berkeley, 486

Berkeley, CA 94720-6000

tsalazar@library.berkeley.edu

Principal Investigator: Charles B. Faulhaber, PhD , 510/642-3781

Public Contact: Theresa Salazar, 510/643-8153; Fax: 510/642-7589

Project Number: H133G000083

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 00 $150,000; FY 01 $150,000

Abstract: This project creates a national platform for comprehensive research on the origins and

leadership of the independent living and disability rights movement in the United States. An experienced team collects and preserves oral histories and archival records of pivotal leaders and key

organizations across the country, before they are irretrievably lost. The documentation that is generated about the formative years of the movement is to be made widely available for research use, both

on the Internet and in appropriate archival repositories. The project includes three main components:

(1) oral history interviews with 50 to 60 national and regional leaders of the movement, (2) collection and preservation of historical records in archival repositories, and (3) the creation of an Internetbased Disability Rights and Independent Living Movement Digital Archive that includes oral histories, selected documents, and finding aids for collected materials at all repositories.
5-8 Associated Disability Research Areas

Field-Initiated Projects (FIPs)

Florida

Equiprecise Measurement for ICIDH-2 Classification of Activity: An

Innovative Solution for Evaluating the Worldwide Incidence and

Prevalence of Disability

University of Florida

Department of Occupational Therapy

P.O. Box 100164

Gainesville, FL 32610-0164

cvelozo@hp.ufl.edu

Principal Investigator: Craig A. Velozo, PhD, OTR

Public Contact: 352/846-1950; 352/333-3115; Fax: 352/846-1042

Project Number: H133G000227

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 00 $149,459; FY 01 $148,388

Abstract: This project develops an efficient and precise activity measurement system that is accessible and useful to individuals with disabilities, consumer groups, health care service providers, and

policy-makers. In the context of people with musculoskeletal/connective tissue disorders or orthopedic impairments, Rasch analysis and Computerized Adaptive Testing (CAT) techniques are used,

applying equiprecise measurement to the categories of movement, moving around, and daily life

activities as defined in the Activity dimension of the ICIDH-2. CAT achieves efficiency by selectively presenting questions at the individual’s ability level, and equiprecise measurement refers to

the potential to have high precision in measuring a trait or construct across the entire range of that

trait or construct.
Associated Disability Research Areas 5-9

Field-Initiated Projects (FIPs)

Illinois

Re-Defining Wholeness: Formulating a Minority Group Model of

Disability Identity Development

University of Illinois/Chicago

1640 West Roosevelt Road, M/C 626

Chicago, IL 60608-6904

cg16@uic.edu

Principal Investigator: Carol J. Gill, PhD

Public Contact: 312/355-0550; 312/413-0453 (TTY); Fax: 312/413-2918

Project Number: H133G990110

Start Date: May 1, 1999

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 99 $149,915; FY 00 $146,732; FY 01 $148,293

Abstract: The project constructs and validates a theoretical model of disability identity development

analogous to models formulated for ethnic, racial, gay/lesbian, and women’s identity development.

The model has significant value in generating testable hypothesis in disability research by contributing a more refined and differentiated understanding of intragroup developmental differences. The

goals of the project are: (1) to illuminate the process by which people with disabilities develop a

positive identity that integrates their disability status, resulting in a sense of wholeness that fortifies

both their resilience to social devaluation and their efforts to live fully in society; (2) to formulate a

comprehensive model of disability identity development that takes into account the experiences of

people with various disabilities from a range of social/cultural backgrounds; (3) to validate the

model by testing predicted relations between disability identity categories and other variables that

are theoretically relevant to identity development; (4) to use the model to investigate how people

with disabilities who also have other minority group status (based on race, ethnicity, gender, or

sexual orientation) develop disability identity, and organize their intersecting identities and multiple

group affiliations; and (5) to disseminate this information to people with disabilities, their families,

professionals, and advocates so it can be used to support positive identity development in children,

adolescents, and adults with disabilities.
5-10 Associated Disability Research Areas

Field-Initiated Projects (FIPs)

Illinois

A Multilevel Analysis of the Relationship Between Domestic Violence

and Disability

University of Illinois/Chicago

Department of Occupational Therapy

1919 West Taylor Street, M/C 811

Chicago, IL 60612-7250

helfrich@uic.edu

Principal Investigator: Christine Helfrich, PhD

Public Contact: 312/996-4626; Fax: 312/413-0256

Project Number: H133G990144

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 99 $149,853; FY 00 $149,949; FY 01 $149,944

Abstract: This project studies the interaction between domestic violence and disability. Detailed

case studies are developed for 15 women who are domestic violence victims with a disability, who

are interviewed and observed in routine activities of daily living over a two-year period. This project

is designed to begin building an understanding of the relationships and consequences of domestic

violence and disability through a multimethod approach. Research objectives are: (1) to document

the extent and nature of impairment/disability among women who are identified as victims of domestic violence in a municipal hospital; (2) to document the disability-related characteristics of

women who present to an emergency shelter for domestic violence; (3) to document the long-term

service needs of women with disabilities who are victims of domestic violence; and (4) to disseminate project findings in appropriate formats to policy-makers, service providers, and consumers.
Associated Disability Research Areas 5-11

Field-Initiated Projects (FIPs)

Illinois

An Analysis of the Demography of Living Standards, Health, and

Poverty of Persons with a Disability Living in Third World Nations

Based on Data from the World Bank

University of Illinois/Chicago

1640 West Roosevelt Road

Chicago, IL 60608-7205

gfujiura@uic.edu

http://www.uic.edu/depts/idhd/ced

Principal Investigator: Glenn T. Fujiura, PhD

Public Contact: 312/413-1977; Fax: 312/413-4098

Project Number: H133G010139

Start Date: November 1, 2001

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $150,000

Abstract: This project analyzes World Bank economic development data in 24 developing nations

of the world. The goal of the analysis is to describe basic demographics and their relationship to the

living standards of persons with a disability. The overall goals of the project are to elevate awareness

of disablement issues globally, to assist local advocacy efforts in raising awareness of disability as a

basic development issue, and to stimulate a dialogue regarding the international role in the evolving

paradigm of disability. Primary areas of emphasis are: (1) characterization of employment, economic

status, and social well-being (i.e., access to health services, supports, assets); (2) estimation of the

magnitude of disablement within nations; (3) identification of subgroups within each nation that are

most vulnerable to disablement; (4) analysis of the status of women with disabilities; (5) identification of unique regional concerns; and (6) broad comparisons of the living standards in the developing

world to those of the U.S. The project employs systems initiated by the World Bank in 1980 called

the Living Standards Measurement Survey (LSMS) project, which involves sophisticated population-based household surveys on economic behavior and living standards in underdeveloped nations.

This project is a collaborative effort by the Department of Disability and Human Development at the

University of Illinois/Chicago (UIC) and Disabled Peoples’ International (DPI). The project

operationalizes the principles of participatory action research by employing the expertise of regional

representatives of the DPI, a consumer-driven, cross-disability network with member organizations

in more than 158 countries, of which more than half are in the developing world.

Knowledge Dissemination and Utilization

Dissemination and utilization are the tools through which to ensure that people with

disabilities become fully integrated and participating members of society. NIDRR’s

dissemination and utilization efforts ensure the widespread distribution, in usable

formats, of practical scientific and technological information generated by research,

demonstration, and related activities. NIDRR’s challenge is to reach diverse and

changing populations, to present research results in many different and accessible

formats, and to use technology appropriately.

Contents

Disability and Rehabilitation Research Projects .................................................................................. 1

Field-Initiated Projects (FIPs) ............................................................................................................ 15

ADA Technical Assistance Projects ................................................................................................... 17

Assistive Technology Technical Assistance Projects ......................................................................... 18

Knowledge Dissemination and Utilization 6-1

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Alabama

National Spinal Cord Injury Statistical Center

University of Alabama/Birmingham

SRC 515

1717 Sixth Avenue, South

Birmingham, AL 35249-7330

farris@uab.edu

http://www.spinalcord.uab.edu

Principal Investigator: Michael J. DeVivo, PhD, 205/934-3320

Public Contact: Vicki Farris, 205/934-5049; Fax: 205/934-2709

Project Number: H133A011201

Start Date: July 1, 2001

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $349,988

Abstract: The Statistical Center has the following objectives: (1) establish the appropriate IT system; (2) train and provide technical assistance to the Model SCI centers; (3) communicate with

NIDRR and the centers to ensure quality of the items in the database; (4) demonstrate the capacity to

conduct and facilitate research from the database; (5) link to other related databases; (6) incorporate

culturally appropriate methods of data collection and dissemination, including culturally sensitive

measurement approaches; (7) demonstrate the capacity to provide technical assistance to the Model

SCI centers and other related projects regarding database development and maintenance.
6-2 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

California

National Resource Center for Parents with Disabilities

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

tlg@lookingglass.org

http://www.lookingglass.org

Principal Investigator: Megan Kirshbaum, PhD; Paul Preston, PhD

Public Contact: Paul Preston, PhD, 510/848-1112 (V); 800/644-2666 (V); 800/804-1616 (TTY);

Fax: 510/848-4445

Project Number: H133A980001

Start Date: April 1, 1998

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 98 $500,000; FY 99 $500,000; FY 00 $500,000; FY 01 $500,000

Abstract: The National Resource Center for Parents with Disabilities focuses on the 10.9 percent of

U.S. families with children in which one or both parents have a disability—nearly 9 million parents.

The Center provides: (1) accessible and disability-appropriate information regarding parenting with a

disability to parents, potential parents, disability advocates, and legal, medical, and social service

providers; (2) training to parents with disabilities, potential parents, and service providers; (3) technical assistance that increases informed practice and informed decisions; (4) program consultation that

increases local and regional services that are accessible and disability-appropriate. To accomplish

these goals, project researchers: (1) consolidate and disseminate information and resources, (2)

synthesize and disseminate materials from other agencies and organizations, (3) develop and disseminate new materials tailored to address the specific needs of parents with disabilities and service

providers, (4) expand the national availability of training and technical assistance to parents with

disabilities and service providers, and (5) develop curricula to train future service providers.

Parenting areas designated as highest priority are: custody, pregnancy and birthing, adoption, adaptive parenting equipment, and general parenting information. The project is staffed by nationally

recognized experts regarding parents with disabilities, the majority of whom are parents with disabilities or family members of parents with disabilities.
Knowledge Dissemination and Utilization 6-3

Disability and Rehabilitation Research Projects

California

Ideas for the New Millennium

World Institute on Disability

510 - 16th Street, Suite 100

Oakland, CA 94612-1520

kathy@wid.org

http://www.wid.org

http://www.disabilityworld.org

Principal Investigator: Kathy Martinez

Public Contact: 510/251-4326; Fax: 510/763-4109

Project Number: H133A990006

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Eva M. Gavillán, EdD

NIDRR Funding: FY 99 $400,000; FY 00 $400,000; FY 01 $400,000

Abstract: This project creates a productive international exchange of information and expertise on

disability and rehabilitation, connecting disability research and advocacy leadership in ten target

countries with their peers in the United States. At the heart of this exchange is an online information

system that captures innovation, links government officials, policy-makers, disability leaders, rehabilitation specialists, researchers and innovators in a lively exchange of ideas, networks, resources,

and contacts. This sustainable network of information and resources on substantive disability issues

is available across professions, cultures, and communities. The issues critical to the information

exchanges are: (1) disability rights and independent living, (2) employment and entrepreneurial

activity, (3) access and technology, (4) mass media images, and (5) influence through governance.

Using a civil rights perspective, the project addresses disability policy, law, advocacy, research, and

related developments in the ten countries. The project systematically promotes international exchange, reports results, and analyzes their significance in consumer-friendly formats and forums,

including a comprehensive database, five annual symposia, as well as a monthly Webzine and online

exchange of information in English and Spanish. The project collaborates with five disability-led

organizations with substantial international experience.
6-4 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

California

Disability and Rehabilitation Research Project to Disseminate

Independent Living Research Information Through the Mass Media to

Persons with Disabilities

Center for an Accessible Society

Exploding Myths, Inc.

2980 Beech Street

San Diego, CA 92102

cjones@accessibilesociety.org

http://www.accessiblesociety.org

Principal Investigator: Cynthia Jones

Public Contact: 619/232-2727, ext. 111 (V); 619/234-3130 (TTY); Fax: 619/234-3155

Project Number: H133A980045

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 98 $299,991; FY 99 $299,994; FY 00 $299,988; FY 01 $299,996

Abstract: This project disseminates research information on Independent Living (IL) through the

popular mass media. Like many groups who rely on well-planned programs of media dissemination

involving media relations firms, this project hires and works proactively with a media relations firm

and selected researchers to obtain coverage of IL issues in the popular mass media. The goal is to

create the recognition that the target population and its issues require ongoing, in-depth coverage.

The project conducts a proactive “media watch” to identify opportunities to insert an IL perspective

into public debates on policy issues in the popular mass media. As part of that watch, the project

establishes a “rapid response” program to provide members of the popular mass media with resources among IL researchers, and to generate a response from the IL community to stories that omit

the IL perspective. The project manages an interactive Web site to provide information and resources

about IL research to members of the popular mass media, researchers, and consumers.
Knowledge Dissemination and Utilization 6-5

Disability and Rehabilitation Research Projects

Georgia

TECH CONNECTIONS: Improving the Utilization of Existing and

Emerging Rehabilitation Technology in the State Vocational

Rehabilitation Program

United Cerebral Palsy Associations, Inc.

490 Tenth Street Northwest

Atlanta, GA 30318

techconnections@crt.gatech.edu

http://www.techconnections.org

Principal Investigator: Anthony J. Langton, MS

Public Contact: 877/835-7335; 404/385-0633; Fax: 404/385-0641

Project Number: H133A980052

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 98 $499,970; FY 99 $500,000; FY 00 $499,978; FY 01 $499,962

Abstract: TECH CONNECTIONS facilitates the use of rehabilitation technology in state VR programs. This customer-responsive, customer-driven, training, technical assistance, and dissemination

project features: (1) a multifaceted approach to training that builds capacity through new curricula

and new supporting materials that augment existing materials, for use by project-trained rehabilitation and university staff; (2) regional training forums, topic-specific audio conferences, and satellite

video training; (3) individualized technical assistance and information about the AT, on a case-bycase basis, for rehabilitation professionals and for their customers with disabilities; and (4) broadbased outreach and dissemination to people who provide AT. Training includes an Internet-based

discussion group open to rehabilitation professionals, people with disabilities, and other interested

parties and a mentoring program pairing experienced technology users with rehabilitation professionals or people with disabilities seeking AT. Additional methods of outreach include project announcements circulated to rehabilitation, education, and disability Internet discussion lists; presentations at conferences and workshops; a toll-free phone number; and an Internet-based newsletter.

United Cerebral Palsy Association works in collaboration with the Center for Rehabilitation Technology and the Southeast Disability and Business Technical Assistance Center.
6-6 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

Kansas

Improving Research Information Dissemination and Utilization to

Promote Independent Living (The RIIL Project)

University of Kansas

Research and Training Center on Independent Living

Schiefelbusch Institute for Life Span Studies

4089 Dole Building

Lawrence, KS 66045

rtcil@ukans.edu; jbudde@dole.lsi.ukans.edu; glen@ukans.edu

http://www.lsi.ukans.edu/rtcil/rtcil.htm

http://www.GetRIIL.org

Principal Investigator: James Budde, EdD; Glen White, PhD

Public Contact: 785/864-4095; Fax: 785/864-5063

Project Number: H133A980048

Start Date: January 1, 1999

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 98 $299,999; FY 99 $299,999; FY 00 $299,999; FY 01 $299,999

Abstract: This project increases the amount of relevant and useful independent living (IL) information to consumers to enable them to reach their IL goals more effectively. Consumer-empowered

teams determine the need and provide input for research and development over the course of each

project. Activities include: (1) completion of needs and barriers survey, how input from consumers

can help identify priorities, and using this knowledge to create a research primer; (2) developing an

information infrastructure for research that includes a searchable and interactive IL database and uses

existing Internet tools such as chat rooms and Internet discussion lists; (3) providing technical

assistance to consumers, family members, policy-makers, and practitioners; (4) training practitioners

and advocates to provide technical assistance; and (5) assisting researchers in developing research

reports for consumers, family members, and practitioners involving consumers in their research. To

date, several products are available that include a brief of the initial survey, guidelines to research for

nonresearchers, and a review of literature related to writing for nonresearchers. This project is

partnered with the Independent Living Research and Utilization Project at The Institute for Rehabilitation Research (TIRR). This project participates in the NIDRR Scholars program, providing motivated undergraduates with internship experience in disability research.
Knowledge Dissemination and Utilization 6-7

Disability and Rehabilitation Research Projects

Maryland

ABLEDATA Database Program

ORC Macro

8630 Fenton Street, Suite 930

Silver Spring, MD 20910

abledata@macroint.com

http://www.abledata.com

Principal Investigator: Katherine Belknap, 301/608-8998, ext. 100

Public Contact: Katherine Belknap, 800/227-0216 (V); 301/608-8998 (V); 301/608-8912 (TTY);

Fax: 301/608-8958

Project Number: HN96015001

Start Date: October 1, 1996

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 96 $269,522; FY 97 $269,522; FY 98 $269,522; FY 99 $269,522; FY 00

$269,522; FY 01 (No-cost extension through 3/26/02)

Abstract: This project maintains and expands the ABLEDATA database, develops information and

referral services that are responsive to the special technology product needs of consumers and professionals, and provides the data to major dissemination points to ensure wide distribution and

availability of the information to all who need it. The ABLEDATA database contains information on

more than 26,000 assistive devices, both commercially produced and custom made. Requests for

information are answered via telephone, mail, electronic communications, or in person.
6-8 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

Maryland

National Rehabilitation Information Center (NARIC)

KRA Corporation

1010 Wayne Avenue, Suite 800

Silver Spring, MD 20910

dwendling@kra.com

http://www.naric.com

Principal Investigator: Mark X. Odum

Public Contact: Information Specialists, 800/346-2742 (V); 301/562-2400 (V); 301/495-5626

(TTY); Fax: 301/562-2401

Project Number: ED-99-CO-0057

Start Date: February 1, 1999

Length: 34.5 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 99 $736,876; FY 00 $850,000; FY 01 $850,000

Abstract: The National Rehabilitation Information Center (NARIC) maintains a research library of

more than 60,000 documents and responds to a wide range of information requests, providing facts

and referral, database searches, and document delivery. Through telephone information referral and

the Internet, NARIC disseminates information gathered from NIDRR-funded projects, other federal

programs, and from journals, periodicals, newsletters, films, and videotapes. NARIC maintains

REHABDATA, a bibliographic database on rehabilitation and disability issues, both in-house and on

the Internet. Users are served by telephone, mail, electronic communications, or in person. NARIC

also prepares and publishes the annual NIDRR Program Directory and its companion Compendium

of Products by NIDRR Grantees and Contractors. Both are available in database format from

NARIC’s Web site.
Knowledge Dissemination and Utilization 6-9

Disability and Rehabilitation Research Projects

Massachusetts

Web Accessibility Initiative, Phase II

Massachusetts Institute of Technology

W3C Web Accessibility Initiative

MIT/LCS Room NE43-355

200 Technology Square

Cambridge, MA 02139

jbrewer@w3.org

http://www.w3.org/WAI

Principal Investigator: Tim Berners-Lee, 617/253-5702

Public Contact: Judy Brewer, 617/253-2613

Project Number: H133A000500

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $499,999; FY 01 $499,998

Abstract: The project addresses newly emerging accessibility issues in the Web industry, and expands implementation of existing Web accessibility solutions. Activities include: (1) developing

advanced versions of WAI guidelines and techniques to cover advanced Web technologies such as

XML applications; (2) developing a superset of universal design guidelines by integrating deviceaccessibility issues in 25 or more W3C specifications; (3) documenting techniques for accessibility

features of W3C specifications in appendices and example code; (4) expanding techniques for

retrofitting and validating conformance with WAI guidelines; (5) developing resource packages for

accessibility of E-Commerce and distance learning; (6) providing in-house technical assistance to

industry on the design of accessible Web sites and software; (7) providing and monitoring a liaison

to research and development projects that affect future Web accessibility; and (8) providing technical

assistance to research projects to promote adoption of universal design approaches in development of

new Web technologies. Support for the Phase I project enabled WAI to address cross-disability Web

accessibility issues successfully through a broad range of activities. It has provided a forum where

scores of organizations internationally have combined their efforts to improve the accessibility of the

Web. For tens of millions of Americans with visual, hearing, physical, or cognitive disabilities, Web

accessibility provides the key to the information society: to the online commercial world, educational opportunity, employment opportunity, workplace communication, government services,

recreation, and more.
6-10 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

New Jersey

Traumatic Brain Injury National Data Center

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

kwood@kmrrec.org

http://www.tbindc.org

Principal Investigator: Mitchell Rosenthal, PhD, 973/243-6971

Public Contact: Kenneth Wood, PhD, 973/243-6811; Fax: 973/243-6990

Project Number: H133A011403

Start Date: July 1, 2001

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 01 $348,187

Abstract: Goals of this national data center include: (1) data collection improvements through

development of an interactive web-based syllabus for the use of Traumatic Brain Injury Model

Systems (TBIMS) staff, researchers and others that improves the quality and cost-effectiveness of

data collection efforts; (2) a new web site featuring a searchable TBI Model Systems Research and

Publication Registry; (3) enhanced statistical and technical consultation services to streamline the

database, employ innovative statistical techniques to compensate for incomplete or missing data,

make comparisons with other datasets, improve measurement tools and prediction models, and

enhance analysis of longitudinal data; (4) improved data collection methods based on the “focus

group” feedback received from the data collectors at the other centers, which include awareness and

incorporation of techniques designed to improve cultural sensitivity of data collection instruments

and data collection methodologies used in the model systems; (5) consumer dissemination of the

latest research results and innovative demonstration projects from the model systems through a

partnership with the national Brain Injury Association (BIA); (6) continued leadership in TBIMS

dissemination activities through Facts and Figures, TBIMS and BIA web sites, NCDDR dissemination programs, journal publications, and TBIMS conferences; (7) continued development of policies

that allow for public access to data, while protecting the confidentiality of subjects in the database

and incorporating the perspectives of both NIDRR and the TBIMS researchers and data management

teams; (8) collaboration with the NIDRR SCI and Burn Data Centers to develop advanced methods

of database function, data acquisition, data quality assurance, and general Data Center operations;

and (9) new projects with CDC and other programs whose database have similar TBI populations.
Knowledge Dissemination and Utilization 6-11

Disability and Rehabilitation Research Projects

New York

Center for International Rehabilitation Research Information and

Exchange (CIRRIE)

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

515 Kimball Tower

Buffalo, NY 14214

kmorgan@buffalo.edu

http://cirrie.buffalo.edu

Principal Investigator: John Stone, PhD, 716/829-3141, ext. 169

Public Contact: Kathleen Morgan, 716/829-3141, ext. 149; Fax: 716/829-3217

Project Number: H133A990010

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Eva M. Gavillán, EdD

NIDRR Funding: FY 99 $400,000; FY 00 $400,000; FY 01 $400,000

Abstract: The mission of this Center is to improve rehabilitation services by obtaining and disseminating information on international rehabilitation research and practices. CIRRIE has four primary

objectives: (1) develop and maintain an international research database, searchable from an accessible Web site and organized according to the major types of rehabilitation research, as delineated in

the NIDRR Long-Range Plan; (2) assist grantees of the Office of Special Education and Rehabilitation Services (OSERS) to establish an international component within their domestic conferences by

facilitating and subsidizing participation by international experts and involve U.S. experts in international conferences; (3) conduct an international exchange of research and technical assistance experts

based on requests from rehabilitation research centers in the U.S. and other countries; and (4) disseminate information to rehabilitation service providers on the cultural issues relevant to meeting the

needs of recent immigrants. Publications include monographs addressing the relevant cultural issues

for the top ten countries of origin of foreign-born people in the U.S. The monographs are based on a

model of the service provider as a “culture broker,” with the first monograph in the series addressing

the theory of culture brokering and its relevance to rehabilitation practice. A workshop on this topic

is also available.
6-12 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

New York

National Resource Center on Supported Living and Choice for People

with Mental Retardation and Developmental Disabilities

Syracuse University

Center on Human Policy

805 South Crouse Avenue, Room 101

Syracuse, NY 13244-2280

thechp@sued.syr.edu

http://soeweb.syr.edu/thechp

Principal Investigator: Steven J. Taylor, PhD, 315/443-3851

Public Contact: Bonnie Shoultz, Associate Director; Rachael A. Zubal, Information Coordinator,

800/894-0826 (V); 315/443-3851 (V); 315/443-4355 (TTY); Fax: 315/443-4338

Project Number: H133A990001

Start Date: January 1, 1999

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 99 $400,000; FY 00 $400,000; FY 01 $400,000

Abstract: This project conducts information dissemination, training, and technical assistance on

community inclusion, with a specific focus on supported living and choice. The Center identifies and

documents innovative policies and practices for home ownership, self-directed support services, selfdetermination, self-advocacy, and community participation. Activities include the preparation of

information materials for direct support staff, a national survey of state funding for supported living,

and increased efforts to address the needs of historically underrepresented groups. The project

maintains an information clearinghouse on supported living and choice and disseminates resource

material targeted to people with developmental disabilities, family members, professionals, direct

services staff, policy-makers, and providers. It offers assistance and support to Self Advocates

Becoming Empowered, state and local providers, developmental disability councils, and protection

and advocacy agencies.
Knowledge Dissemination and Utilization 6-13

Disability and Rehabilitation Research Projects

Texas

National Center for the Dissemination of Disability Research (NCDDR)

Southwest Educational Development Laboratory

211 East Seventh Street, Suite 400

Austin, TX 78701-3281

lharris@sedl.org

http://www.ncddr.org

Principal Investigator: John Westbrook, PhD, 512/476-6861

Public Contact: Lin Harris, Information Assistant, 800/266-1832 (V/TTY); Fax: 512/476-2286

Project Number: H133A990008

Start Date: September 30, 1999

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 99 $750,000; FY 00 $750,000; FY 01 $750,000

Abstract: The National Center for the Dissemination of Disability Research (NCDDR) helps close

the gap between the production of disability research and its use, by addressing four objectives: (1)

to increase the use of effective dissemination and utilization strategies among NIDRR-funded research projects by identifying and evaluating effective dissemination and utilization (D&U) methodologies that grantees can use; (2) to ensure access to NIDRR-funded research findings among diverse

public audiences by developing, implementing, and evaluating a range of access strategies; (3) to

improve the effectiveness and efficiency of NIDRR grantees’ dissemination efforts by developing,

implementing, and evaluating plans for collaboration among NIDRR-funded research projects; and

(4) to strengthen the capacity of NIDRR-funded research projects to address the needs of their

intended audiences by providing technical assistance in the design and implementation of D&U

methodologies. Research includes collecting data to clarify information needs among people with

disabilities and their families, describing barriers that prevent access to research outcomes, and

obtaining descriptions of how researchers set research priorities and disseminate results. D&U

activities include a variety of supports for dissemination to people with disabilities, service and

community-based agencies, advocacy organizations, and disability and mainstream media. The

project focuses extensively on innovative approaches to electronic media, but also addresses the

needs of consumers, service agencies, and others who lack electronic access. The NCDDR website

features the NIDRR Grantee Calendar of Events, the Registry of Online Resources (in English and

Spanish), the Research Exchange, online focus groups, database resources, information about the

Interagency Committee on Disability Research (ICDR), and a variety of online dissemination and

utilization products. This project participates in the NIDRR Scholars program, providing motivated

undergraduates with internship experience in disability research.
6-14 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

Texas

Model Spinal Cord Injury Systems Dissemination Center

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund

Houston, TX 77030-3405

khart@bcm.tmc.edu

Principal Investigator: Karen A. Hart, PhD

Public Contact: 713/797-5946; Fax: 713/797-5982

Project Number: H133A011501

Start Date: September 1, 2001

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $150,000

Abstract: The Model Spinal Cord Injury Systems (MSCIS) Dissemination Center is a collaborative

effort between the NIDRR-funded Model Spinal Cord Injury Centers and SCI collaborative research

projects. The Center provides information about MSCIS research and publications to inquirers and

model system staff members via the Internet, the telephone, and surface mail. Overall objectives of

the project are: (1) documenting the scientific productivity of the Model SCI Centers and Collaborative Research Projects and providing a history of the Model Centers’ publications; (2) verifying that

the publications are peer-reviewed by downloading citations from Medline, Current Contents, Cumulative Index to Nursing and Allied Health Literature (CINAHL) and Psychology Literature

(PsychLit); (3) ensuring the accuracy of the citations through verification by Center and author semiannually; (4) maintaining, on a semi-annual basis, the listing of web-accessible citations hosted on

web site of the Regional Spinal Cord Injury Center of the Delaware Valley at Thomas Jefferson

University Hospital in Philadelphia; (5) documenting and verifying the accuracy and currency of

published book chapters and textbooks; (6) storing information electronically in Reference Manager

in a format that can be uploaded to Reference Web Poster on the Center’s web site; (7) gathering

structured data from each of the Model SCI Centers and Collaborative Research Projects that describes the educational products produced and the presentations given, as evidence of the significant

work being done; (8) classifying the educational products and presentations produced by the Model

SCI Centers and Collaborative Research Projects to provide a variety of accurate retrieval options for

interested constituents; (9) developing a data storage system that facilitates uploads into the

program’s web site in accessible format for interested constituents such as individuals with SCI,

organizations, NIDRR, NCDRR, NARIC, the Model SCI Centers, libraries, rehabilitation facilities,

professionals, and students; (10) disseminating efficiently and effectively to the greatest number of

constituents the publications, educational products, and presentations produced by the Model SCI

Centers and the Collaborative Research Projects as an aggregate representation of this NIDRR

program’s contribution to the field of SCI; (11) providing a mechanism for NCDRR and NARIC to

verify that they have complete and accurate information about all the Model SCI Centers and their

accomplishments so that NCDDR and NARIC can achieve their dissemination objectives; and (12)

reaching the greatest number of individuals possible with information and education about SCI by

efficient use of NIDRR-funded resources and personnel.
Knowledge Dissemination and Utilization 6-15

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

Colorado

Disability Law Knowledge Management System: A One-Stop

Clearinghouse for Disability Information

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

info@mtc-inc.com

Principal Investigator: Robert H. Gattis Jr.

Public Contact: 719/444-0252; Fax: 719/444-0269

Project Number: H133G000221

Start Date: June 1, 2000

Length: 36 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 00 $149,998; FY 01 $149,977

Abstract: The Disability Law Knowledge Management System (KMS) project develops a comprehensive knowledge dissemination and utilization repository of disability civil rights information in a

Web-based helpdesk format. The system builds on research conducted for the Rocky Mountain

Disability and Business Technical Assistance Center (DBTAC) project, in which a prototype knowledge management system was developed and tested with information specialists from NIDRRfunded DBTACs. The prototype included a portion of the material available on the American with

Disabilities Act. The Disability KMS project expands on the earlier work in two important areas. It

vastly increases the quantity of information in the knowledge base, and it makes the work of information specialists more available to the general public. The project includes a comprehensive evaluation of the resulting system.
6-16 Knowledge Dissemination and Utilization

Field-Initiated Projects (FIPs)

North Carolina

Exploring Universal Design: Developing and Disseminating Universal

Design Education Material Online

North Carolina State University

Center for Universal Design

219 Oberlin Road

Box 8613

Raleigh, NC 27695-8613

molly_story@ncsu.edu

http://www.udeducation.org

Principal Investigator: Molly Story

Public Contact: 303/699-8133; Fax: 303/699-4703

Project Number: H133G000025

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $149,967; FY 01 $149,721

Abstract: This project develops an interactive Web site of universal design instructional materials,

project ideas, visuals, teaching strategies, and resources for use by design faculty, students, practicing designers, and user-experts. These growing audiences require sophisticated instructional materials, available through an efficient and timely means of communication and dissemination. Objectives

include: (1) allowing flexibility and discussion in how projects, visuals, and instructional materials

are used in design education; (2) building an infusion model of teaching rather than a prescriptive,

singular curriculum approach; and (3) promoting the site internationally to design faculty, practitioners, and others interested in universal design education. Partners in the project are the Center for

Universal Design, the IDEA Center/Center for Virtual Architecture at SUNY/Buffalo, and Elaine

Ostroff of the Global Universal Design Educators Network.
Knowledge Dissemination and Utilization 6-17

ADA Technical Assistance Projects ADA Technical Assistance Projects

Washington

National Center on Accessible Information Technology in Education

University of Washington

Center on Human Development and Disability

Box 357920

Seattle, WA 98195-7920

accessit@u.washington.edu

http://www.washington.edu/accessit

Principal Investigator: Kurt Johnson, PhD; Sheryl Burgstahler, PhD, 206/543-3677

Public Contact: Lyla Crawford, 866-968-2223 (V/TTY); 206/685-4181; Fax: 206/221-4171

Project Number: H133D010306

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $700,000

Abstract: This program helps educational and governmental institutions make IT accessible to all

students and employees, including those with disabilities. The Center: (1) compiles, redesigns, and

develops materials that assist educational entities and their constituents in understanding and fulfilling their legal obligations to provide accessible IT, including an ADA self-evaluation guide for

schools, Section 504 and ADA guidance for educational entities, technical materials on IT access, a

consumer’s guide to accessible IT, and technical IT standards; (2) conducts a national information

dissemination campaign using multiple formats and venues that raise awareness of accessible education-based IT and inform target audiences about the availability of technical assistance from the

Disability Business Technical Assistance Centers (DBTACs) and others; (3) develops, disseminates,

and provides technical assistance with implementation of policies, procedures, and practices that

promote the use and procurement by educational entities of accessible IT that meets the standards for

Section 508 or follows universal design principles; (4) coordinates with and provides training,

materials, and technical assistance to the DBTACs in support of their technical assistance efforts to

educational entities on accessible IT; and (5) provides training, materials, and technical assistance to

staff of the U.S. Department of Education’s various IT initiatives and coordinates efforts with relevant Federal agencies and programs in order to assure that strategies for achieving accessible IT are

used and promoted in every facet of activities and programs carried on by these organizations. The

Center is a collaboration of the Center for Technology and Disability Studies, Opportunities,

Internetworking, and Technology project (DO-IT), in partnership with the Equal Access to Software

and Information (EASI) and the Microsoft Corporation. The Center works with the NIDRR-funded

National Center on the Study of Postsecondary Education Supports and the National Center on

Secondary Education and Transition in its dissemination efforts.
6-18 Knowledge Dissemination and Utilization

Assistive Technology Technical Assistance Projects Assistive Technology Technical Assistance Projects

Georgia

assistivetech.net (formerly Global Assistive Technology Explorer

(GATE))

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street Northwest

Atlanta, GA 30332-0156

beth.bryant@arch.gatech.edu

http://www.assistivetech.net

Principal Investigator: Elizabeth A. Bryant, 404/894-1413

Public Contact: Joseph Koncelik, 404/894-4283; Fax: 404/894-9320

Project Number: H224B990004

Start Date: November 1, 1999

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 99 $352,000; FY 00 $300,000; FY 01 $296,311

Abstract: assistivetech.net is a comprehensive, up-to-date, easy to use Internet site on disabilityrelated resources. assistivetech.net increases the availability of, and access to, information about AT,

services, and resources available for people with disabilities. The assistivetech.net Web site serves

people with disabilities, their families, service providers, educators, employers, and members of their

communities. The site has been created for maximum access to all users, regardless of ability, software, or hardware. assistivetech.net features: access to a comprehensive library (a database) of

information on AT and rehabilitation equipment available for all environments; an innovative automated intelligent agent to assist users in problem definition and selection of appropriate AT devices

and service resources; a vendor data entry interface to ensure up-to-date information on AT and

devices; a Web-based meeting place where all people concerned with disability and AT can meet and

discuss ideas, problems, and solutions; electronic links to appropriate and accessible public and

private resources and information related to all types of disabilities, including low-level reading

skills.
Contents

Field-Initiated Projects (FIPs) .............................................................................................................. 1

ADA Technical Assistance Projects ..................................................................................................... 2

ADA Technical Assistance Programs

The Americans with Disabilities Act (ADA) opens more opportunities for persons

with disabilities. It also places certain responsibilities on employers, transit and

communication systems, state and local governments, and public accommodations.

To assist covered parties to understand and comply with the ADA, NIDRR has

funded a network of grantees to provide information, training, and technical

assistance to businesses and agencies with duties and responsibilities under the ADA.

ADA Technical Assistance Projects 7-1

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

Illinois

Developing the Capacity of Minority Communities to Promote the

Implementation of the Americans with Disabilities Act

University of Illinois/Chicago

Institute on Disability and Human Development

1640 West Roosevelt Road

Chicago, IL 60608-6904

fabricio@uic.edu; brigidah@uic.edu

http://www.uic.edu/depts/idhd/empower

Principal Investigator: Fabricio E. Balcazar, PhD , 312/413-1646

Public Contact: Brigida Hernandez, PhD, 312/996-6824 (V); 312/413-0453 (TTY); Fax: 312/413-

1804

Project Number: H133G80074

Start Date: June 1, 1998

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 98 $125,995; FY 99 $124,995; FY 00 $124,997; FY 01 (No-cost extension

through 5/31/02)

Abstract: This project develops, implements, and evaluates the capacity of minority communities to

further the implementation of the Americans with Disabilities Act (ADA). The project includes: (1)

assisting grass-roots organizations that service the needs of Latinos and African Americans with

disabilities in conducting participatory needs assessments; (2) assisting these organizations in setting

goals and planning actions to address specific problems identified in the needs assessment process;

(3) providing feedback and technical support to these organizations in meeting their goals; (4)

providing leadership training and technical support to strengthen the independence and self-reliance

of these grass-roots organizations; and (5) conducting research with local centers for independent

living in minority communities of Chicago, including assessments of ADA physical accessibility and

surveys on barriers to employment.
7-2 ADA Technical Assistance Projects

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region I - CT, ME, MA, NH, RI, and VT

New England ADA Center and Universal Design in Educational IT

(Disability and Business Technical Assistance Center - Region I)

Adaptive Environments Center, Inc.

374 Congress Street, Suite 301

Boston, MA 02210-1807

oharrison@adaptiveenvironments.org; vfletcher@adaptenv.org

http://www.adaptiveenvironments.org

Principal Investigator: Valerie Fletcher , 617/695-1225, ext. 26

Public Contact: Oce Harrison, EdD, Project Director, 800/949-4232 (V/TTY in CT, ME, MA, NH,

RI, and VT); 617/695-1225, ext. 31 (V/TTY); Fax: 617/482-8099

Project Number: H133D010211

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 01 $850,000

Abstract: The New England DBTAC provides technical assistance, training, and information dissemination for Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont.

The new grantee retains relationships with previously contracted state affiliates, the statewide coalitions, the annual incentive grants, and the newsletter. Groups with rights or responsibilities under the

ADA that are targeted for expanded outreach include self-advocacy organizations and the ARC;

libraries; human resources trade groups; the hospitality industry, including Visitor and Convention

Bureaus; schools; and health care professionals. Annual regional training initiatives include day-long

workshops for state, municipal, and county ADA coordinators; half-day trainings for centers for

independent living; training for architects on ADA updates; outreach and training in minority and

immigrant communities both to people with disabilities and business owners; and voter accessibility

training. Implementation of the education-based IT component of the project includes: (1) establishing regional linkages to educational entities for cooperation/collaboration; (2) establishing the

capacity in each state to coordinate and build skill, using resources of state organizations and the

state infrastructure to reach large audiences through familiar, local methods; (3) training using a

variety of distance learning techniques tailored to target audiences; (4) convening a collaborative

conference on universal design on the web with the Rhode Island School of Design; (5) running a

public awareness campaign that puts the issue of universal design on the educational IT agenda; and

(6) identifying best practices in the region to be written up as case studies each year.
ADA Technical Assistance Projects 7-3

ADA Technical Assistance Projects

Region II - NJ, NY, PR, and VI

Northeast Disability and Business Technical Assistance Center -

Region II

Cornell University

Program on Employment and Disability

School of Industrial and Labor Relations

106 ILR Extension Building

Ithaca, NY 14853-3901

ah45@cornell.edu

http://www.nedbtac.org

Principal Investigator: Susanne BruyPre, PhD , 607/255-7727

Public Contact: Andrea Haenlin-Mott, Project Director, 800/949-4232 (V/TTY, in NJ, NY, PR, and

VI); 607/255-8348; Fax: 607/255-2763

Project Number: H133D010205

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $1,100,000

Abstract: The Northeast DBTAC provides technical assistance, training, and information dissemination for New Jersey, New York, Puerto Rico, and the Virgin Islands. It provides information, training, and technical assistance to educational entities in Region II, on the procurement and use of

accessible IT for students and employees with disabilities. Services are comprehensive, involving

effective use of existing networks and collaborations with regional partners and organizations that

currently deliver services to educational organizations, parent organizations, disability advocacy

organizations, employers, labor unions, and state and local government. The Program on Employment and Disability at Cornell University’s School of Industrial and Labor Relations takes the lead

in a regional collaborative effort that includes the following partners: Office of the Advocate for

Persons with Disabilities for New York state; AccessPoint Solutions in New Jersey; the Department

of Architecture and Center for Assistive Technology at the State University of New York (SUNY) at

Buffalo; the Assistive Technology Project at the University of Puerto Rico; the University Affiliated

Program at the University of the Virgin Islands; and various local agencies and organizations.
7-4 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region III - DC, DE, MD, PA, VA, and WV

Mid-Atlantic Disability Business Technical Assistance Center -

Region III

TransCen, Inc.

451 Hungerford Drive, Suite 607

Rockville, MD 20850-4151

adainfo@transcen.org

http://www.adainfo.org

Principal Investigator: Marian S. Vessels, Project Director

Public Contact: 800/949-4232 (V/TTY, in DC, DE, MD, PA, VA, and WV); 301/217-0124 (V/

TTY); Fax: 301/217-0754

Project Number: H133D010212

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 01 $1,099,998

Abstract: The Mid-Atlantic DBTAC provides technical assistance, training, and information dissemination for Delaware, the District of Columbia, Maryland, Pennsylvania, Virginia, and West

Virginia. Activities are organized under two major goals: (1) provide technical assistance, training,

and information dissemination about the ADA; and (2) provide technical assistance, training, and

information dissemination about accessible education-based IT. Individual activities to meet these

goals and project objectives are designed to build capacity among State and local agencies, including

Centers for Independent Living, so that the Center’s impact and effectiveness is maximized. Approximately 20,000 individuals and organizations are directly impacted through project activities

each year.
ADA Technical Assistance Projects 7-5

ADA Technical Assistance Projects

Region IV - AL, FL, GA, KY, MS, NC, SC, and TN

Southeast Disability Business Technical Assistance Center - Region IV

Georgia Tech Research Corporation

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street

Atlanta, GA 30318

sedbtac@catea.org

http://www.sedbtac.org

Principal Investigator: Shelley Kaplan, Project Director , 404/385-0636

Public Contact: 800/949-4232 (V/TTY, in AL, FL, GA, KY, MS, NC, SC, and TN); 404/385-0636

(V/TTY); Fax: 404/385-0641

Project Number: H133D010207

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $1,450,000

Abstract: The Southeast DBTAC provides technical assistance, training, and information dissemination for Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, and

Tennessee. The project: (1) provides expert technical assistance to promote voluntary and effective

implementation of the ADA among entities with rights and responsibilities; (2) facilitates widespread

use, particularly in educational entities, of accessible and usable electronic and IT; (3) fosters and

facilitates regional capacity-building by cultivating collaborations between the regional Educational

Leadership Team and the existing ADA Leadership Network; (4) expands training programs by

incorporating enhanced distance learning methods, including teleconferences, web-based training,

and electronic discussions, that are designed in a fully accessible and useful manner; and (5) identifies and disseminates “Best Practices” in employment and IT in order to encourage and support

replication. To build on its ten-year history of regional capacity building, the DBTAC: (a) strengthens its ADA Leadership Network of eight state and sixty-seven local affiliates; (b) shares expertise

about IT through the Center for Rehabilitation Technology’s Information Technology Technical

Assistance and Training Center; and (c) facilitates accessible education-based IT across the educational spectrum via the newly-established Educational Leadership Team.
7-6 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region V - IL, IN, MI, MN, OH, and WI

Great Lakes Disability Business Technical Assistance Center -

Region V

University of Illinois/Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Room 405

Chicago, IL 60608-6904

gldbtac@uic.edu

http://www.adagreatlakes.org

Principal Investigator: Robin A. Jones, Project Director , 312/996-1059

Public Contact: 800/949-4232 (V/TTY, in IL, IN, MI, MN, OH, and WI); 312/413-1407 (V/TTY);

Fax: 312/413-1856

Project Number: H133D010203

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $1,450,000

Abstract: The Great Lakes DBTAC provides technical assistance, training, and information dissemination for Illinois, Indiana, Michigan, Minnesota, Ohio, and Wisconsin. The project’s audiences

include business, government, and education organizations and individuals with disabilities and their

families. The Center assists these audiences in understanding their rights and responsibilities under

the ADA. For example, technical assistance and training are provided to educational entities regarding their responsibility to ensure that the IT they purchase and use is accessible to and usable by

individuals with disabilities. The aim is that within the education system administrators, educators,

staff, students, and parents have full and equal access to programs, services, and information used or

disseminated through a variety of information technologies. The Center programs and services are

coordinated through a network of collaborators at the local, state, and regional level representing

business, government, education entities and people with disabilities. Services and programs include

direct technical assistance, training, and materials dissemination utilizing a variety of methods and

strategies.
ADA Technical Assistance Projects 7-7

ADA Technical Assistance Projects

Region VI - AR, LA, NM, OK, and TX

Southwest Disability Business Technical Assistance Center - Region VI

The Institute for Rehabilitation and Research (TIRR)

Independent Living Research Utilization (ILRU)

2323 South Shepherd Boulevard, Suite 1000

Houston, TX 77019-7024

swdbtac@ilru.org

http://www.ilru.org/dbtac/

Principal Investigator: Lex Frieden , 713/797-5283

Public Contact: Wendy Wilkinson, Project Director, 800/949-4232 (V/TTY, in AR, LA, NM, OK,

and TX); 713/520-0232 (V); 713/520-5136 (TTY); Fax: 713/520-5785

Project Number: H133D010210

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 01 $1,099,997

Abstract: The Southwest DBTAC provides technical assistance, training, and information dissemination for Arkansas, Louisiana, New Mexico, Oklahoma, and Texas. It provides a comprehensive

array of training, technical assistance, and dissemination services on the ADA, IT, and other disability-related laws in the five states of Federal Region VI. Operating from the strongly held conviction

that change results when businesses, schools, governments, and individuals receive information on

access and accommodation, the DBTAC aggressively and proactively expands its existing programs

to reach, inform, and educate traditional audiences (businesses, governments, and individuals) and

previously untargeted audiences (notably, schools implementing IT). It uses a collaborative structure

of partners in all five states, enhancing the effectiveness of the DBTAC and, in turn, increasing the

capacity of partner organizations to provide technical assistance. Several organizations play key

partner roles, including the New Mexico Technology Assistance Project, the Southwest Education

Development Laboratory, the Region VI Regional Rehabilitation Continuing Education Program

(RRCEP), the Better Business Bureau Consumer Education Foundation, AT projects in each state,

and several Centers for Independent Living (CILs) that have demonstrated success in reaching and

providing ADA and IT information to persons with disabilities.
7-8 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region VII - IA, KS, MO, and NE

Great Plains Disability Business Technical Assistance Center -

Region VII

University of Missouri/Columbia

100 Corporate Lake Drive

Columbia, MO 65203

ada@missouri.edu

http://www.adaproject.org

Principal Investigator: Jim de Jong, Project Director , 573/882-3600 (V)

Public Contact: 800/949-4232 (V/TTY, in IA, KS, MO, and NE); 573/882-3600 (V/TTY); Fax:

573/884-4925

Project Number: H133D010201

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 01 $850,000

Abstract: The Great Plains DBTAC provides technical assistance, training, and information dissemination for Iowa, Kansas, Missouri, and Nebraska. In order to facilitate successful implementation of the ADA and accessible education-based IT in Region VII, the project and its collaborating

partners: (1) provide training and technical assistance, and disseminate materials to individuals and

entities with responsibilities and rights under the ADA regarding the ADA’s requirements as well as

developments in case law, policy, and implementation; (2) increase the capacity of organizations at

the state and local level, including Centers for Independent Living (CILs), to provide training on the

ADA; (3) provide training and technical assistance, and disseminate material on the legal obligations

of educational entities to provide accessible IT to students and employees; (4) provide information to

CILs, Parent Training Information Centers, and Regional Resource Centers on accessible educationbased IT; (5) increase the capacity of organizations at the state and local level, including CILs, to

provide technical assistance; (6) provide technical assistance to educational entities to enable them to

conduct self-evaluations on the accessibility of their IT; and (7) provide technical assistance, either

directly or through referral, regarding how to make existing IT accessible and ensure that new IT

acquisitions are accessible.
ADA Technical Assistance Projects 7-9

ADA Technical Assistance Projects

Region VIII - CO, MT, ND, SD, UT, and WY

Rocky Mountain Disability Business Technical Assistance Center -

Region VIII

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

RegionVIII@mtc-inc.com

http://www.ada-infonet.org

Principal Investigator: Joyce Maynard Hume, Project Director , 719/444-0252

Public Contact: 800/949-4232 (V/TTY, in CO, MT, ND, SD, UT, and WY); 719/444-0268 (V/

TTY); Fax: 719/444-0269

Project Number: H133D010004

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 01 $849,716

Abstract: The Rocky Mountain DBTAC provides technical assistance, training, and information

dissemination for Colorado, Montana, North Dakota, South Dakota, Utah, and Wyoming. The

project builds the capacity for reaching every individual, business, public entity, and educational

institution with training, materials dissemination, and technical assistance on the ADA and educational-based IT accessibility. A comprehensive program expands a collaborative network consisting

of key agencies and organizations throughout the region. This project also operates and maintains the

ADA Impact Measurement System (AIMS), a web-based system that consists of a mail-back postcard and a telephone survey of customers. This system allows the ten regional DBTACs to evaluate

the outcomes of the DBTAC program quantitatively.
7-10 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region IX - AZ, CA, HI, NV, and the Pacific Basin

Pacific Disability Business Technical Assistance Center - Region IX

Public Health Institute

2168 Shattuck Avenue, Suite 301

Berkeley, CA 94704-1307

adatech@pdbtac.com

http://www.pacdbtac.org

Principal Investigator: Erica C. Jones, Project Director , 510/848-2980 (V); 510/848-1840 (TTY)

Public Contact: Technical Assistance, 800/949-4232 (V/TTY, in AZ, CA, HI, NV, and the Pacific

Basin); 510/848-2980 (V); Fax: 510/848-1981

Project Number: H133D010209

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $1,450,000

Abstract: The Pacific DBTAC provides technical assistance, training, and information dissemination for Arizona, California, Hawaii, Nevada, and the Pacific Basin. The latest funding cycle includes a series of innovative initiatives and approaches to enhance compliance with ADA rules and

regulations. There is also an integrated action plan to enhance the availability of accessible IT equipment in Federal Region IX, primarily through a focus on educational institutions as key sites for

adopting the principles of Section 508, and for ensuring full access to IT for young people with

disabilities. The Pacific DBTAC’s interdisciplinary, multilevel management strategy ensures that all

project objectives are tracked and attained and that Center services are fully integrated and delivered

in an effective, cost-efficient, and accessible manner. The DBTAC provides quality training, federally approved materials, and technical assistance services to requesters who seek support, advice,

and information and it conducts proactive strategic outreach and education services that promote

adherence to ADA regulations and principles at all levels of society. Education-Based Information

Technology, being a key focus, uses best practices to promote utilization throughout school systems.
ADA Technical Assistance Projects 7-11

ADA Technical Assistance Projects

Region X - AK, ID, OR, and WA

Northwest ADA/IT Center (Disability Business Technical Assistance

Center - Region X)

Oregon Health and Science University

Oregon Institute on Disability and Development

P.O. Box 574

Portland, OR 97207-0574

nwada@ohsu.edu

http://www.nwada.org

Principal Investigator: Charles Drum, JD, PhD , 503/494-8047

Public Contact: Lynnea Ruttledge, Project Director, 800/949-4232 (AK, ID, OR, and WA only);

503/494-6747; Fax: 503/494-6868

Project Number: H133D010002

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $850,000

Abstract: The Northwest DBTAC/Information Technology Center provides technical assistance,

training, and information dissemination for Alaska, Idaho, Oregon, and Washington. Audiences

include people with disabilities, state and local governments, and businesses in Region X. In addition to the Americans with Disabilities Act (ADA) and other state and federal disability laws and

regulations, the Center also provides technical assistance, training, and dissemination to educational

entities regarding “best practices” information on accessible IT. The sources of such information

include the new National Center on Accessible Education-Based Information Technology.
7-12 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Virginia

National ADA Program Assistance Coordinator

CESSI

6858 Old Dominion Drive, Suite 250

McLean, VA 22101

adata@adata.org

http://www.adata.org

Principal Investigator: Shelia Newman

Public Contact: Jennifer Eckel, Project Director, 703/448-6155 (V); 703/448-3079 (TTY); Fax:

703/442-9015

Project Number: ED-99-CO-0002

Start Date: November 6, 1998

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 99 $319,744; FY 00 $327,553; FY 01 $495,827

Abstract: The role of the ADA Program Assistance Coordinator (PAC) is to enhance the performance of the organizations that are members of NIDRR’s nationwide ADA Technical Assistance

grant program. These include ten regional Disability and Business Technical Assistance Centers

(DBTACs), and Cornell University School of Industrial and Labor Relations’ Research and Demonstration Project (R&D) for improving employment practices covered by Title I of the ADA. The

Program Assistance Coordinator conducts: (1) coordination services, (2) collaborative assistance, (3)

public relations, and (4) reporting activities. In addition, the PAC organizes and manages the semiannual Project Directors’ meetings. It facilitates legal review of grantee generated materials. The

PAC identifies and distributes appropriate materials from federal agencies, related NIDRR research

projects, and private and public sector organizations. As a gateway to the national ADA technical

assistance grant program, the PAC maintains a national Web site, develops and disseminates promotional materials, and implements a national visibility campaign for the grantees.
Capacity-Building for Rehabilitation Research and Training

NIDRR funding for capacity building supports advanced instruction for researchers

and service providers, and training for consumers in applications of new research and

technology. This involves training researchers across disciplines, training

rehabilitation practitioners and service providers to use research-generated knowledge

and new techniques, and training consumers to participate in research efforts.

Distinguished and Merit Fellowships are provided for a one-year period of intense

research.

Contents

Rehabilitation Research and Training Centers (RRTCs) ...................................................................... 1

Disability and Rehabilitation Research Projects .................................................................................. 2

Fellowships (Distinguished) ................................................................................................................. 3

Fellowships (Merit) .............................................................................................................................. 7

Advanced Rehabilitation Research Training Projects ........................................................................ 13

NIDRR Contracts ............................................................................................................................... 27

Capacity Building for Rehabilitation Research Training 8-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

UIC National Research and Training Center on Psychiatric Disability

University of Illinois/Chicago

Department of Psychiatry

104 South Michigan Avenue, Suite 900

Chicago, IL 60603-5902

http://www.psych.uic.edu/uicnrtc

Principal Investigator: Judith A. Cook, PhD, 312/422-8180, ext. 19

Public Contact: Jessica A. Jonikas, 312/422-8180, ext. 18 (V); 312/422-0706 (TTY); Fax: 312/422-

0740

Project Number: H133B000700

Start Date: September 30, 2000

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 00 $450,000; FY 01 $450,000

Other Funding: FY 00 $300,000 (CMHS); FY 01 $300,000 (CMHS)

Abstract: This Center conducts a comprehensive series of research and training projects that focus

on increasing self-determination for persons with psychiatric disability. The Center’s current projects

are composed of five core areas: (1) choices in treatment decision-making; (2) economic self-sufficiency; (3) consumer advocacy under managed care; (4) career development through real jobs for

real wages; and (5) strengthening self-determination skills and self-advocacy. These core areas

reaffirm that people with psychiatric disabilities have the right to maximal independence, which

grows out of making choices in the decisions that affect their lives. Project activities are implemented by multidisciplinary workgroups composed of consumers, families, service providers, state

agency administrators, researchers, and Center staff. Outcome and measurement tools developed for

each core area assess key outcomes and program policies related to self-determination. The project

includes a collaboratively planned state-of-the-science conference on self-determination and psychiatric disability and a comprehensive report on self-determination in this area. Advanced technology

is incorporated into each project’s objectives and Center training and dissemination activities. Multimedia formats ensure widespread accessibility of the Center’s products and materials to multiple

constituents. Additionally, the Center conducts evaluation and basic research; trains consumers,

families, and rehabilitation, education, and mental health service providers. The staff also develops

and provides information for public policy initiatives.
8-2 Capacity Building for Rehabilitation Research Training

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Center for Minority Training and Capacity Building for Disabilities

Research

Texas Southern University

College of Continuing Education

3100 Cleburne Avenue

Houston, TX 77004

ieepps@yahoo.com; dksimmons@pdq.net

http://www.tsu.edu/education/cmtcbdr/default.htm

Principal Investigator: Irvine E. Epps, EdD, 713/313-7224

Public Contact: Darrell K. Simmons, Project Coordinator, 713/313-7753; Fax: 713/313-7579

Project Number: H133A990024

Start Date: October 1, 1999

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 99 $300,000; FY 00 $300,000; FY 01 $300,000

Abstract: This project addresses the education, training, and preparation of researchers from minority backgrounds and institutions in disability research, in collaboration with other minority, majority,

and tribal institutions. The project includes a multifaceted approach to the assessment of current

barriers experienced by minority researchers, including those with disabilities and those funded by

NIDRR. Project activities include institutional capacity building for minority institutions to conduct

disability research; training minority and majority researchers; and dissemination of information,

communications, and publications to enhance the capacity of researchers to compete for future

research funds.
Capacity Building for Rehabilitation Research Training 8-3

Fellowships (Distinguished) Fellowships (Distinguished)

Florida

Long-Term Care for People with Disabilities: An Independent Living

Perspective

Andrew Batavia, JD

2845 Prairie Avenue

Miami Beach, FL 33140

Batavia1957@hotmail.com

Principal Investigator: Andrew Batavia, JD

Public Contact: 305/672-1128

Project Number: H133F010029

Start Date: May 1, 2001

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 01 $55,000

Abstract: This project uses an independent living perspective to examine all options of long-term

care available to people with disabilities. Long-term care promises to be the premier challenge to our

health care system in the coming decades as the population ages. This project reviews and analyzes

the highly fragmented literature on long-term care, home care, and personal assistance services, and

consolidates knowledge about long-term care as it regards people with disabilities.
8-4 Capacity Building for Rehabilitation Research Training

Fellowships (Distinguished)

Massachusetts

Do Interventions in Augmentative and Alternative Communication

Really Work? A Research Synthesis

Ralf W. Schlosser, PhD

Northeastern University

Department of Speech, Language, Audiology, and Pathology

151B Forsyth

Boston, MA 02115-5000

R.Schlosser@neu.edu

Principal Investigator: Ralf W. Schlosser, PhD

Public Contact: 617/373-3785; Fax: 617/373-8756

Project Number: H133F010010

Start Date: September 1, 2001

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 01 $55,000

Abstract: This project integrates and synthesizes the extant research literature on the effectiveness

of interventions in augmentative and alternative communication (AAC), and it communicates the

findings in multiple formats. Using meta-analytic methods, the research extends and updates a

previous synthesis effort by Schlosser and Lee (currently in press). Added to this version are AAC

interventions that were not adequately addressed in the previous effort, as well as experiments that

only report behavior change data (i.e., without generalization and/or maintenance data). Social

validation of goals and dissemination strategies are used for this research.
Capacity Building for Rehabilitation Research Training 8-5

Fellowships (Distinguished)

Texas

Synthetic Speech Perception and Graphic Symbol Acquisition in

Persons with Severe Mental Retardation

Rajinder Koul, PhD

Texas Tech University Health Sciences Center

3601 Fourth Street, Stop 6073

Lubbock, TX 79430

Rajinder.Koul@ttu.edu

Principal Investigator: Rajinder Koul, PhD

Public Contact: 806/743-5660, ext. 227; Fax: 806/743-5670

Project Number: H133F010003

Start Date: September 1, 2001

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 01 $55,000

Abstract: This project examines the perception of synthetic speech in individuals with mental

retardation. Individuals with little or no functional speech as a result of mental retardation frequently

rely on non-speech communication systems to augment or replace natural speech. These systems

include electronic voice output communication aids (VOCAs) that provide synthetic speech output

upon activation. However, very little is known to what extent individuals with mental retardation

comprehend synthetic speech produced by the VOCAs. Project activities include: (1) investigating

the perception of synthetic speech in individuals with severe mental retardation; (2) evaluating the

magnitude and the type of practice effects resulting from systematic exposure to synthetic speech in

individuals with severe mental retardation; and (3) studying the relationship between perception of

synthetic speech and the acquisition of graphic symbols by individuals with severe mental retardation.
8-6 Capacity Building for Rehabilitation Research Training

Fellowships (Distinguished)

Texas

The Effect of Variable-Practice Strategy on Wheelchair-Pushing Skills

and Energy Expenditure During Wheelchair Propulsion

Wan X. Yao, PhD

Division of Education

University of Texas at San Antonio

San Antonio, TX 78249

wyao@utsa.edu

Principal Investigator: Wan X. Yao, PhD

Public Contact: 210/458-5792; Fax: 210/458-5848

Project Number: H133F010031

Start Date: September 1, 2001

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 01 $55,000

Abstract: This project determines the efficacy of a variable practice strategy in improving propulsive skills that affect the efficiency of wheelchair propulsion. In addition, the project is also aimed at

determining the optimal movement parameters (e.g. pushing time, recovering time, start angle, and

end angle) and the optimal speed that leads to efficient wheelchair propulsion. Variable practice is a

learning strategy in which participants practice on two or more alternatives (e.g. practicing on wheelchair-pushing skills under different speeds), in contrast to a constant practice strategy in which

participants only practice on skills under one condition. This is important because many tasks have

inherent variability, such as steering a car down an unfamiliar road or pushing a wheelchair with

different speeds. An important part of learning such tasks is acquiring the capability to cope with

novel and/or unusual situations; practicing under constant (unvarying) situations would appear to be

too limited.
Capacity Building for Rehabilitation Research Training 8-7

Fellowships (Merit) Fellowships (Merit)

Arkansas

Maladaptation to Disability and Post-Traumatic Stress Disorder: An

Empirical Study on the Reactive Phases to the Trauma of a Disability

Erin C. Martz

University of Arkansas/Fayetteville

Department of Rehabilitation Education and Research

316 West Avenue Annex

Fayetteville, AR 72701

erinmartz@juno.com

Principal Investigator: Erin C. Martz

Public Contact: 501/846-1500

Project Number: H133F010022

Start Date: September 1, 2001

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 01 $45,000

Abstract: This fellowship researches posttraumatic stress disorder (PTSD) reactions to disability in

the context of spinal disorders. The project compares the theoretical similarities of the two bodies of

research on maladaptive reactions to trauma (PTSD) and maladaptive reactions to disability. The

research empirically explores the reciprocal causation of the latent variables among the maladaptive

reactions to trauma, as measured by the Purdue PTSD Scale and maladaptive reactions to disability,

as measured by Reactions to Impairment and Disability Inventory. Structural equations modeling is

used to investigate the existence of reciprocal causation of the latent variables. Of the many possible

applications of this research, foremost is an increased knowledge of the reactions typically experienced by individuals with spinal disorders. Professionals and individuals with spinal disorders can

use this knowledge to understand psychological reactions to trauma and disability better, in order to

surpass these reactions and promote and strengthen individuals’ abilities.
8-8 Capacity Building for Rehabilitation Research Training

Fellowships (Merit)

Hawaii

A Compensatory Strategy for Students with Learning Disabilities in

Postsecondary Education and Their Subsequent Employment

Kelly D. Roberts

University of Hawaii at Manoa

1776 University Avenue, UA4-6

Honolulu, HI 96822

robertsk@hawaii.edu

Principal Investigator: Kelly D. Roberts

Public Contact: 808/255-2101; Fax: 808/956-5713

Project Number: H133F010040

Start Date: September 1, 2001

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 01 $45,000

Abstract: This research project determines if AT in the form of voice recognition software can assist

in overcoming some of the barriers encountered by people with learning disabilities. Research

further seeks to determine if the use of AT can impact related issues, such as retention rate, grades,

and perception of the composition process. Lastly, the research determines whether a transfer occurs

of “learned benefits” to subsequent professional employment settings.
Capacity Building for Rehabilitation Research Training 8-9

Fellowships (Merit)

Illinois

No Seat at the Table, No Voice in the Chorus: Perspectives of Young

Men of Color on Their Disabilities, Identities, and Peer Mentors

Brigida Hernandez

1640 West Roosevelt Road

Chicago, IL 60608

brigidah@uic.edu

Principal Investigator: Brigida Hernandez

Public Contact: 312/996-6824; Fax: 312/413-1804

Project Number: H133F010002

Start Date: September 1, 2001

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 01 $45,000

Abstract: This project examines the development of disability identity among persons with violently-acquired spinal cord injuries (VASCI). Since the 1990s, the demographics of disability in the

United States have shifted significantly. Increasing violence has increased the number of persons

who have sustained a SCI as a result of gunshot trauma. Yet despite their emergence as a new disability group, the growing body of research on disability identity continues to focus primarily on the

traditional demographic groups; people with violence-related disabilities have not been represented.

In this project a focus group is conducted with persons with VASCI to gather data on developing

research questions for individual interviews. Individual interviews then examine the development of

disability identity more fully. Participants are individuals with a newly-acquired SCI from gunshot

trauma. Additionally, the project examines the contribution of ethnicity/race and peer-mentoring on

disability identity.
8-10 Capacity Building for Rehabilitation Research Training

Fellowships (Merit)

Pennsylvania

Functional Behaviors and Parasympathetic Nervous System Functions

in Children with Sensory Modulation Dysfunction

Roseann C. Schaaf

Thomas Jefferson University

130 South Ninth Street, Edison 810

Philadelphia, PA 19107

Roseann.schaaf@mail.tju.edu

Principal Investigator: Roseann C. Schaaf

Public Contact: 215/503-9609; Fax: 215/503-3499

Project Number: H133F010021

Start Date: September 1, 2001

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 01 $45,000

Abstract: This project investigates the relation between atypical functional behavior and parasympathetic functioning in children with Sensory Modulation Dysfunction (SMD). This is accomplished

by testing such hypotheses as: (1) in comparison to other children, children with SMD demonstrate

decreased parasympathetic functioning; and (2) atypical parasympathetic functioning correlates with

functional impairments and disability in children with SMD. This project contributes further knowledge regarding the physiological impairment of children with SMD and how this impacts on functional impairments and disability. The knowledge gained can help identify children with SMD earlier

and more appropriately, and eventually guides intervention strategies designed to help these children

be more successful in their home, community, and school environments.
Capacity Building for Rehabilitation Research Training 8-11

Fellowships (Merit)

Virginia

The Law and Economics of the ADA

Michael Ashley Stein, PhD

College of William and Mary

Marshall Wythe School of Law

South Henry Street, Room 214

Williamsburg, VA 23187-8795

mastei@wm.edu

Principal Investigator: Michael Ashley Stein, PhD

Public Contact: 757/221-3762; Fax: 757/221-3261

Project Number: H133F010012

Start Date: August 1, 2001

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 01 $45,000

Abstract: This project demonstrates positive external benefits to consider when assessing the potential economic effect, such as savings in recruitment expenses, on a given firm by an employee with a

disability. The project explores the metrics outside the traditional labor market model that can be

used to to gauge the success of Title I, for example. Additionally, the project examines the connection between increased labor market participation and environmental factors external to the ADA

relating to the availability of health care and the availability of accessible public transportation.

These research goals should establish a framework through which academics and policy makers can

engage assertions made by economically-based critics of the ADA.
8-12 Capacity Building for Rehabilitation Research Training

Fellowships (Merit)

Wisconsin

Effects of Client Race on Rehabilitation Counselor Perception and

Judgment: A Computerized Replication

David A. Rosenthal, PhD

University of Wisconsin/Stout

231 Vocational Rehabilitation Building

Menomonie, WI 54751-0790

Rosenthald@uwstout.edu

Principal Investigator: David A. Rosenthal, PhD

Public Contact: 715/232-2490; Fax: 715/232-2356

Project Number: H133F010015

Start Date: August 1, 2001

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 01 $45,000

Abstract: This project uses vignettes to investigate the effects of client race (African-American

versus white) on perceptions of a client by rehabilitation counselors, focusing on aspects of perceptions potentially influenced by racial stereotypes. The aspects of counselor perceptions evaluated are:

general evaluation of the client; psychopathology likely to be exhibited by the client; the client’s

potential for education and training; and the client’s potential for employment. Two versions of a

simulated case are identical, except that the client is portrayed as African-American in one version

and as white in the other; client race is conveyed by means of a photograph on an arrest report and

by written designation of client race in the written materials. A true experimental design is utilized in

which subjects are randomly assigned to one of two groups, with the African-American version of

the simulated case presented to one group and the white version to the other.
Capacity Building for Rehabilitation Research Training 8-13

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training Project in Rehabilitation

Services Research

Northwestern University

Rehabilitation Institute Research Corporation

Rehabilitation Services Evaluation Unit

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

http://www.rseu.northwestern.edu

http://www.northwestern.edu/ihsrps

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-4572

Project Number: H133P80014

Start Date: May 1, 1998

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $150,000; FY 99 $150,000; FY 00 $150,000; FY 01 $150,000

Abstract: This project develops a five-year fellowship program in rehabilitation services research at

Northwestern University’s Institute for Health Services Research and Policy Studies and the Department of Physical Medicine and Rehabilitation. It uses available expertise and collaborators to train

postdoctoral fellows in rehabilitation health services research. Over two years the program includes

course work, a practicum, original research, and grant writing. Fellows new to health services research have six core courses, as well as the two additional courses for all fellows. The first year

concentrates on beginning Masters in Public Health (MPH) courses. The second year includes

intermediate MPH course work plus electives. Each fellow is expected to develop an individual

research project by the end of the first training year and a publishable article by the end of the second

year in addition to submitting at least one grant application related to the research activity.
8-14 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Illinois

Rehabilitation Science for Engineers and Basic Scientists: An

Advanced Training Program

Northwestern University

Rehabilitation Institute of Chicago

345 East Superior Street, Room 1406

Chicago, IL 60611

w-rymer@nwu.edu

Principal Investigator: W. Zev Rymer, MD, PhD

Public Contact: 312/238-3919; Fax: 312/908-2208

Project Number: H133P990006

Start Date: February 1, 1999

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $148,323; FY 00 $148,752; FY 01 $148,724

Abstract: The goal of this program is to increase the number of PhD engineers and basic scientists

trained to perform research aimed at solving problems of people with disabilities. To meet this

objective, the project trains postdoctoral scientists in three areas of special expertise: musculoskeletal

biomechanics; neurorehabilitation; and prosthetics, orthotics, and biomaterials. Targeted technical

training is coordinated with intensive clinical instruction and experience. Postdoctoral trainees,

including scientists and engineers from minority or disability groups, are recruited by regional and

national advertising and via the Internet. Many training faculty are based within the Rehabilitation

Institute of Chicago, providing access to active clinical rehabilitation programs, and interaction both

with clinical faculty and people with disabilities.
Capacity Building for Rehabilitation Research Training 8-15

Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training

University of Illinois/Chicago

Department of Disability and Human Development

College of Health and Human Development Sciences

1640 West Roosevelt Road

Chicago, IL 60608-6904

theller@uic.edu

Principal Investigator: Tamar Heller, PhD

Public Contact: 312/413-1537; Fax: 312/996-6942

Project Number: H133P000005

Start Date: April 1, 2000

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 00 $150,000; FY 01 $150,000

Abstract: This project provides an intensive interdisciplinary postdoctoral training program for

disability and rehabilitation research scholars. The program combines immediate immersion in an

ongoing research program with a focused didactic training experience, providing trainees with

knowledge of the critical values, current issues, and innovative approaches in contemporary disability research. The training is offered through a cooperative effort of three units within the College of

Health and Human Development Sciences: the Department of Disability and Human Development,

Department of Occupational Therapy, and the Department of Physical Therapy. These departments

have an established record of successful collaboration in advanced training, including creating the

Interdisciplinary Doctor of Philosophy (PhD) in Disability Studies at UIC, a unique interdisciplinary

doctoral program that addresses the multidimensional nature of disability. A central theme of this

program is that the current fragmentation of knowledge regarding disability can be rectified only by

preparing future scholars and researchers who have a coherent, integrated, and in-depth knowledge

of the multidimensional nature of disabilities. All three academic units offering this advanced research training have senior faculty with established, ongoing research programs capable of guiding

postdoctoral training in three specialized content areas of disability research: disability measurement,

disability experience, and disability service and policy.
8-16 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Kansas

Rehabilitation Research Training Program

University of Kansas

Beach Center on Disability

Haworth Hall, Room 3136

1200 Sunnyside Avenue

Lawrence, KS 66045-7534

turnbull@ukans.edu

http://www.beachcenter.org

Principal Investigator: Ann Turnbull, PhD, 785/864-7608

Public Contact: Anette Lundsgaarde, 785/864-7601; Fax: 865/864-5825

Project Number: H133P70004

Start Date: July 1, 1997

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 97 $150,000; FY 98 $150,000; FY 99 $150,000; FY 00 $150,000; FY 01

$150,000

Abstract: This project increases the quantity of new postdoctoral and doctoral researchers and

ensures their competency along family-systems, life-span, and multicultural dimensions. Focusing

on families whose members have disabilities, the scholars become capable of conducting independent research related to: (1) the families studied; (2) rehabilitation and special education agencies,

systems, and processes; and (3) families and individuals from culturally and linguistically diverse

backgrounds who are served by those systems. The postdoctoral fellows collaborate with faculty

from the Beach Center, Special Education Department, and other faculty in learning and conducting

disability and family research for a full year. The doctoral trainees take their PhD degrees in special

education, majoring in family and disability studies and minoring in research methodologies.
Capacity Building for Rehabilitation Research Training 8-17

Advanced Rehabilitation Research Training Projects

Massachusetts

The Development, Implementation, and Evaluation of a Research

Training Program in Psychiatric Rehabilitation

Boston University

Sargent College of Health and Rehabilitation Sciences

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215

erogers@bu.edu

http://web.bu.edu/SARPSYCH

Principal Investigator: Sally E. Rogers, PhD

Public Contact: Marsha Ellison, 617/353-3549 (V); Fax: 617/353-7700

Project Number: H133P70014

Start Date: March 1, 1997

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 97 $147,489; FY 98 $147,489; FY 99 $147,489; FY 00 $147,489; FY 01

$147,489

Abstract: In this program, six individuals who possess doctoral-level clinical training are recruited

and provided with a broad-based, intensive 27-month training fellowship in rehabilitation research.

To provide an optimal training experience, three fellows are in residence at a time. Each fellow gains

competency in the following areas: psychiatric rehabilitation, research design/methodology, statistics, consumer issues (as they relate to applied research), the conduct of applied rehabilitation research, computer literacy, and grant and professional writing.
8-18 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Massachusetts

An Integrated Rehabilitation Engineering Research Training Program

Boston University

44 Cummington Street

Boston, MA 02215

jcollins@bu.edu

Principal Investigator: James J. Collins, PhD

Public Contact: 617/353-0390; Fax: 617/353-5462

Project Number: H133P990003

Start Date: February 1, 1999

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $149,915; FY 00 $149,915; FY 01 $149,915

Abstract: The goal of this project is to establish a clinically oriented, scientifically grounded educational program for training biomedical engineering (BME) postdoctoral fellows in rehabilitation

engineering. The overall objective of the program is to produce biomedical engineers who are capable of communicating and interacting with physician investigators in a significant and meaningful

manner, and who are capable of defining and solving clinically relevant problems in rehabilitation

engineering. The specific objectives of this project are: (1) to establish a core faculty and administrative structure for the training program; (2) to provide BME postdoctoral fellows with the opportunity

to participate in clinical educational rotations in physical medicine and rehabilitation (PM&R) and

geriatrics; (3) to provide BME postdoctoral fellows and medical trainees in geriatrics or PM&R with

the opportunity to collaborate on clinically relevant research projects; and (4) to establish a rehabilitation engineering curriculum that includes didactic sessions on clinical research methodology, as

well as a seminar series to expose trainees to leaders in the field and develop their own expertise in

giving scientific presentations. Accordingly, this program trains a new cadre of biomedical engineers

with the knowledge and skills to develop innovative rehabilitation technologies that directly benefit

individuals with disabilities.
Capacity Building for Rehabilitation Research Training 8-19

Advanced Rehabilitation Research Training Projects

Massachusetts

Rehabilitation Health Services Research Fellowship Program

Boston University

Sargent College of Health and Rehabilitation Sciences

635 Commonwealth Avenue

Boston, MA 02215

gquinn@bu.edu

http://www.bu.edu/cre/training

Principal Investigator: Alan M. Jette, PhD, 617/353-2704

Public Contact: Ginger Quinn, 617/353-0550; Fax: 617/353-1355

Project Number: H133P990004

Start Date: June 1, 1999

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $149,999; FY 00 $149,429; FY 01 $149,999

Abstract: This program provides health services research training experience for doctoral-level

professionals from the rehabilitation disciplines. The primary goal is to qualify these fellows to

conduct independent, high quality, funded health services research on problems related to disability

and rehabilitation. Specific goals of the program include: (1) providing intensive, broad-based health

services research training consisting of didactic coursework offered by faculty of Boston University

to a total of six postdoctoral fellows over the course of the five-year project; (2) providing each

fellow with the opportunity to conduct rehabilitation health services research under the guidance of a

faculty mentor from Boston University; and (3) critically evaluating this rehabilitation health services research training program, including the recruitment, academic preparation, mentoring, and the

career development of participating fellows. Through state-of-the-art training and mentoring, the

project contributes to the creation of a cadre of highly skilled health services researchers equipped to

conduct research that improves the measurement of rehabilitation outcomes, evaluate new and

existing rehabilitation inventions, and broadly apply health services research methods to the improved organization and management of rehabilitation services in this changing health care environment.
8-20 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Michigan

The UMHS/MSU/AACIL Rehabilitation Research Training Program

University of Michigan

Department of Physical Medicine and Rehabilitation

Rehabilitation Psychology

1H241 - University Hospital

1500 East Medical Center Drive

Ann Arbor, MI 48109-0050

dgtate@umich.edu

http://www.med.umich.edu/pmr/edu/arrtp

Principal Investigator: Denise G. Tate, PhD

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133P990014

Start Date: February 1, 1999

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $149,955; FY 00 $150,000; FY 01 $149,923

Abstract: Through this research training experience, PhD and MD fellows and resident trainees

acquire and enhance research skills, learn to collaborate effectively across important rehabilitation

areas and disciplines, learn to demonstrate a capacity to apply the results of research to the formulation of disability policy, and develop skills that result in successful research proposals, thereby

ensuring continuance of outstanding rehabilitation research. Emphasizing the consumer-scientistpractitioner model, this multidisciplinary research training program utilizes faculty and resources

from both the University of Michigan and Michigan State University, and the Ann Arbor Center for

Independent Living to train six postdoctoral-level professionals and ten Physical Medicine and

Rehabilitation (PM&R) resident physicians in advanced rehabilitation research. A variety of didactic

and practical experiences make up this research training program. These include participation in

academic courses available at two university campuses, research seminars, presentations and lectures

at meetings and national conferences, and an opportunity to work collaboratively on research

projects being conducted at the three sites. Fellows and resident trainees select from a curriculum

that focuses on four content areas: (1) VR and AT; (2) health/medical rehabilitation outcomes; (3)

independent living and community integration; and (4) socioeconomic aspects of rehabilitation.
Capacity Building for Rehabilitation Research Training 8-21

Advanced Rehabilitation Research Training Projects

Missouri

Research Enrichment Program for Physiatrists

University of Missouri/Columbia

Research Enrichment Program

Harry S. Truman Veterans’ Hospital

800 Hospital Drive, Room C227B

Columbia, MO 65201

williamsjan@health.missouri.edu

http://www.hsc.missouri.edu/~rep

Principal Investigator: Jerry C. Parker, PhD

Public Contact: Janet L. Williams, Project Coordinator, 573/882-1632; Fax: 573/884-4188

Project Number: H133P80009

Start Date: April 1, 1998

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 98 $150,000; FY 99 $150,000; FY 00 $150,000; FY 01 $150,000

Abstract: This project trains 30 physiatry residents and junior faculty in the basic methodological

skills and academic values required to conduct independent research projects. Participants in enrichment programs travel periodically to a central location (or locations) to receive intensive enrichment

experiences. Participants are carefully mentored through the successive steps required for an independent research project. Through the use of carefully designed teaching modules and individualized

instruction, ten participants per year are guided through the steps of an independent research project,

including understanding research design, developing skills for statistical collaboration, preparing

research manuscripts, presenting at scientific meetings, understanding peer review procedures, and

applying for extramural funds. Scholarships are used to cover travel expenses for participants, and

research accounts are used to defray the expenses associated with data collection. Over the course of

one year, participants travel to six centralized training locations. Participants are required to plan and

implement a thesis-like project in their home institutions and to present their research findings.
8-22 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

New Jersey

Advanced Multidisciplinary Training Program in Rehabilitation

Outcomes Research

University of Medicine and Dentistry of New Jersey Medical School

Department of Physical Medicine and Rehabilitation, B261

150 Bergen Street

Newark, NJ 07103

mark_v_johnston@compuserve.com

http://www.kmrrec.org

Principal Investigator: Mark V. Johnston, PhD, 973/243-6810

Public Contact: Heidi Workman, 973/243-2015; Fax: 973/243-6963

Project Number: H133P70011

Start Date: March 1, 1997

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 97 $149,608; FY 98 $149,000; FY 99 $149,000; FY 00 $149,608; FY 01

$149,608

Abstract: Outcomes research designates a group of interrelated scientific methodologies and domains of knowledge that address issues of the effectiveness and cost-effectiveness of rehabilitation in

practice. This project redesigns the research training program to address the scientific basis of patient

outcomes and the effectiveness of rehabilitation in practice. Three areas of research and training,

each with several specific training tracks under experienced research mentors, include: (1) general

outcomes and rehabilitation services research, including functional assessment, practice guidelines,

disability economics, health policy, and disability sociology; (2) studies of community intervention

programs, including outpatient clinics, primary care, independent living programs, geriatric rehabilitation, and alternative medicine; and (3) medical and neuropsychological outcomes research, involving study of specific pathologies or interventions and their relationships to functional outcomes. The

program provides advanced research training to three or more PhD or MD fellows each year, usually

for a two-year term; a predoctoral student at the dissertation level may also be supported. The program is multidisciplinary, including all of the major disciplines associated with rehabilitation and

with outcomes research.
Capacity Building for Rehabilitation Research Training 8-23

Advanced Rehabilitation Research Training Projects

New York

Advanced Rehabilitation Research Training

Mount Sinai School of Medicine

One Gustave L. Levy Place

New York, NY 10029-6574

mary.hibbard@mssm.edu

http://www.mssm.edu/tbinet

Principal Investigator: Mary R. Hibbard, PhD

Public Contact: 212/659-9374; Fax: 212/348-5901

Project Number: H133P000001

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $138,006; FY 01 $140,382

Abstract: This project provides advanced rehabilitation research training to nine postdoctoral psychology fellows. Each fellow participates in the ongoing research of the NIDRR-funded Rehabilitation Research and Training Center (RRTC) on Community Integration of Individuals with Traumatic

Brain Injury. The goals of the training are to: (1) increase the number of researchers in the field of

rehabilitation, (2) enhance knowledge of rehabilitation research, (3) disseminate research findings

within the consumer community, and (4) train fellows to become part of an interdisciplinary research

team. The RRTC is a model program of Participatory Action Research (PAR) that focuses on four

core research areas: quality of life/outcome measurement, disability over the life span, models of

community integration, and psychosocial challenges of persons with a disability.
8-24 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Pennsylvania

Research Training in Rehabilitation Science with Special Emphasis on

Disability Studies

University of Pittsburgh

School of Health and Rehabilitation Sciences

Dean’s Office, 4029 Forbes Tower

Pittsburgh, PA 15260

cliffb+@pitt.edu

http://www.shrs.upmc.edu/research/fellowships.html

Principal Investigator: Clifford Brubaker, PhD

Public Contact: 412/647-1261; Fax: 412/647-1255

Project Number: H133P70013

Start Date: September 1, 1997

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 97 $141,327; FY 98 $147,327; FY 99 $147,327; FY 00 $141,327; FY 01

$141,327

Abstract: This program provides a plan for research training in the emerging academic discipline of

rehabilitation science. The program is based on a multidisciplinary approach to the study of topics

and issues of relevance to people with disabilities. A primary goal is to develop an increased capacity

for research in the general domain of rehabilitation science, and particularly in the area of disability

studies. The program of study is based on a challenging curriculum of didactic instruction, clinical

exposures, community interaction, and research experiences, and encompasses study and research

over a spectrum of scientific, technical, psychosocial, physical, physiological, cultural, ethical,

political, economic, and clinical issues.
Capacity Building for Rehabilitation Research Training 8-25

Advanced Rehabilitation Research Training Projects

Texas

Interdisciplinary Rehabilitation Research Training Program

University of Texas Medical Branch

301 University Boulevard

Galveston, TX 77555

kottenba@utmb.edu

http://www.sahs.utmb.edu/programs/rehab/

Principal Investigator: Kenneth J. Ottenbacher, PhD

Public Contact: 409/772-3002; Fax: 409/747-1623

Project Number: H133P990001

Start Date: July 1, 1999

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 99 $129,562; FY 00 $129,562; FY 01 $139,562

Abstract: This project provides postdoctoral research opportunities to qualified individuals interested in clinical and academic careers related to rehabilitation research. Three postdoctoral fellows

plan, conduct, and disseminate research in one of the following areas: Cognitive/Neurological

Rehabilitation, Applied Biomechanics/Physiology of Rehabilitation, and Geriatric Rehabilitation.

Each rehabilitation research fellow selects one of the three research areas and conducts clinical

investigations for up to three years. Outcomes include published research studies, presentations at

national scientific meetings, submission of grant proposals, completion of research-related courses,

training in techniques of dissemination, and the development of interdisciplinary research networks.

In addition to participating in clinical research activities, each fellow completes a series of core

courses and directed study related to interdisciplinary research and the ethics associated with scientific inquiry in rehabilitation. The activities of each postdoctoral fellow are directed and monitored

by a fellowship supervisor with a demonstrated ability to implement, conduct, and disseminate the

results of research investigations important to the advancement of rehabilitation science.
8-26 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Virginia

Research Training and Career Development Program

Virginia Commonwealth University

Department of Physical Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0542

jskreutz@hsc.vcu.edu

http://www.neuro.pmr.vcu.edu

Principal Investigator: Jeffrey S. Kreutzer, PhD

Public Contact: Jennifer Marwitz, 804/828-3704; Fax: 804/828-2378

Project Number: H133P70003

Start Date: September 1, 1997

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 97 $142,430; FY 98 $149,971; FY 99 $149,971; FY 00 $142,430; FY 01

$142,430

Abstract: This project increases the number of highly skilled rehabilitation research professionals

through an advanced research training program. The research training program is built upon an

existing network of research, clinical care, and teaching resources: on-campus resources include the

nation’s third largest teaching hospital, an NIH Head Injury Center, a Rehabilitation Research and

Training Center, and NIDRR TBI and SCI model systems of care. Program philosophy emphasizes

interdisciplinary collaboration, creativity, quality, and diligence, and emphasizes applied research; it

provides training to individuals with advanced degrees who are committed to a career in rehabilitation. A distinguished interdisciplinary faculty represents fields within basic sciences, biostatistics

and methodology, medicine, psychology, computing and telecommunications, allied health fields,

and VR.
Capacity Building for Rehabilitation Research Training 8-27

NIDRR Contracts NIDRR Contracts

Virginia

Technical Support for Computer and Other Related Activities

Conwal, Inc.

6858 Old Dominion Road

McLean, VA 22101

snewman@conwal.com

http://www.conwal.com

Principal Investigator: Shelia Newman

Public Contact: 703/448-2300 (V); 703/448-3079 (TTY); Fax: 703/448-3087

Project Number: ED-98-CO-0004

Start Date: January 9, 1998

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 98 $500,000; FY 99 $962,042; FY 00 $360,430; FY 01 $253,514

Abstract: This project provides technical support to NIDRR for computer-based and other related

activities. Activities include data collection and tabulation, database and management information

system development, statistical analyses, literature reviews, small surveys, and focus group meetings. Active projects involve analysis and design of a management information system for NIDRR,

focus groups for planning the research agenda, and electronic dissemination.
8-28 Capacity Building for Rehabilitation Research Training

NIDRR Contracts

Virginia

Technical Support for Assessment of Management and Ancillary

Activities of the National Institute on Disability and Rehabilitation

Research

Cherry Engineering Support Services, Inc

6858 Old Dominion Drive, Suite 250

McLean, VA 22101

snewman@cessi.net

http://www.cessi.net

Principal Investigator: Shelia Newman

Public Contact: 703/448-6155; Fax: 703/442-9015

Project Number: ED-00-CO-0079

Start Date: September 7, 2000

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 00 $695,717; FY 01 $245,885

Abstract: This project performs a wide range of technical and support activities for NIDRR, including data collection and analysis, literature reviews, issue analysis and reports, program management

evaluation, conference planning and support, and development of information and database systems.

Task orders completed and in process have ranged from the design and implementation of a peer

review database, analysis of a standing panel peer review model, analysis of intellectual property

issues related to technology transfer, support for the development of NIDRR’s Long-Range Plan,

outreach and networking with disability experts, and numerous meetings and conferences. Two

major tasks are the Design and Conduct of the Program Review Process and Technical Support for

the Interagency Committee on Disability Research (ICDR). Program Review is designed to assess

the level of grantee excellence in administration, scientific rigor, relevance and productivity, and

capacity building. Each year CESSI staff arrange and conduct quarterly meetings of the ICDR and

meetings of the Subcommittees on Disability Statistics, Medical Rehabilitation, and Technology. An

Internet “gateway” for federally funded disability research is under development and staff prepares

reports to Congress and other reports as needed.
State Technology Assistance

This program, funded under Title I of the the Assistive Technology Act of 1998,

supports consumer-driven Grants to States. Currently there are 56 projects that provide statewide, comprehensive, technology-related assistance for individuals with

disabilities of all ages. The purpose of the program is to increase and improve access

to assistive technology devices and services through public awareness and information, advocacy, outreach, technical assistance and training and interagency coordination.

Contents

Assistive Technology Technical Assistance Projects ........................................................................... 1

Alternative Financing Programs ........................................................................................................... 4

State Technology Assistance Projects ................................................................................................ 25

State Technology Assistance Projects 9-1

Assistive Technology Technical Assistance Projects Assistive Technology Technical Assistance Projects

California

Assistive Technology Act Data Collection Project

InfoUse

2560 Ninth Street, Suite 216

Berkeley, CA 94710-2557

ljans@infouse.com

http://www.infouse.com/atdata

Principal Investigator: Lita Jans, PhD, 510/549-6509

Public Contact: 510/549-6520; Fax: 510/549-6512

Project Number: H224B990001

Start Date: September 30, 1999

Length: 48 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 99 $338,000; FY 00 $301,000; FY 01 $301,243

Abstract: The Assistive Technology Act Data Collection Project provides a Web-based performance

standards reporting system that conforms to NIDRR policy and the requirements of the Government

Performance and Results Act (GPRA) of 1993. The data elements and measures were developed

through a broadly inclusive process involving the AT Act State Program grantees and other key

stakeholders. InfoUse also provides national and state estimates of the need for and use of AT, as

well as other useful information on the availability and use of AT devices and services, including a

study on AT and employment. In addition, the project provides descriptive and evaluative information on model approaches that reduce fragmentation of devices and that build the capacity of organizations to deliver services. In conducting this project, InfoUse works closely with the 56 state and

territorial AT Act grantees, the Technical Assistance Projects to the AT Act State Program and P&A

Program grantees, the National AT Internet Site project, as well as consumers, service providers,

advocates, and experts in the field.
9-2 State Technology Assistance Projects

Assistive Technology Technical Assistance Projects

New York

National Assistive Technology Advocacy Project

Neighborhood Legal Services, Inc.

Disability Law Unit

295 Main Street, Room 495

Buffalo, NY 14203-2473

atproject@nls.org

http://www.nls.org

Principal Investigator: James R. Sheldon Jr., Esq.

Public Contact: 716/847-0650; Fax: 716/847-0227

Project Number: H224B990002

Start Date: October 1, 1999

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 99 $199,774; FY 00 $172,858; FY 01 $175,000

Abstract: This project serves a primary customer base of attorneys and advocates who work for the

56 Protection and Advocacy for Assistive Technology (PAAT) projects. It provides: (1) advocacyrelated technical assistance (TA) by telephone, fax, email, and mail to attorneys and advocates to

assist them in their advocacy-related activities; (2) management-related TA to protection and advocacy (P&A) managers and fiscal officers to assist them in their management and fiscal responsibilities associated with their PAAT grants as funded through NIDRR; (3) advocacy-related training

through an annual, three-day Project Conference, sessions at the annual National Association of

Protection and Advocacy Systems (NAPAS) conference, and distance training on special education,

Medicare, and other topics to be determined; (4) management-related training through its subcontractor, NAPAS, at four annual training events sponsored by NAPAS; (5) publications on the funding

of AT through a variety of funding sources, including newsletters, feature articles, booklets, and

training handouts; (6) a clearinghouse for documents related to the funding of AT through in-house

Resource Libraries containing administrative hearing decisions and a wide range of court-related

documents, including briefs and complaints; (7) a Web site containing information relating to the

funding of AT, including many of the Project’s publications, and links to other Web-based resources

to support AT advocacy efforts.
State Technology Assistance Projects 9-3

Assistive Technology Technical Assistance Projects

Virginia

Technical Assistance for Assistive Technology Act State Grant

Program Grantees

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)

1700 North Moore Street, Suite 1540

Arlington, VA 22209-1903

resnata@resna.org

http://www.resna.org/taproject

Principal Investigator: Lawrence C. Pencak

Public Contact: M. Nell Bailey, 703/524-6686, ext. 305 (V); 703/524-6639 (TTY); Fax: 703/524-

6630

Project Number: H224B990005

Start Date: October 1, 1999

Length: 36 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 99 $637,999; FY 00 $600,000; FY 01 $592,604

Abstract: This technical assistance (TA) project supports the 56 State Assistive Technology Act

Grantees. Its purpose is to assist the state grantees, through advocacy and capacity-building initiatives, in their efforts to reduce barriers and increase access to AT devices and services for consumers

with disabilities of all ages. The TA project provides timely, responsive, and proactive assistance

using a comprehensive model for delivery. Delivery strategies include on-site visits and training by

expert consultants; national meetings focused on national policy issues; teleconferences, strategies,

sample documents, and other information; online services and communication tools; and others. All

efforts are responsive to state grantees’ needs to build capacity in changing systems in their state in

order to increase access to AT for individuals with disabilities.
9-4 State Technology Assistance Projects

Alternative Financing Programs Alternative Financing Programs

Arizona

The Arizona Loans for Assistive Technology Program (AzLAT)

Northern Arizona University

Institute for Human Development

4105 North 20th Street, Suite 260

Phoenix, AZ 85016

jill.oberstein@nau.edu

http://www.nau.edu/ihd/aztap

Principal Investigator: Jill S. Oberstein, 602/728-9532

Public Contact: 800/477-9921 (V); 602/728-4670 (V); 602/728-9536 (TTY); Fax: 602/728-9535

Project Number: H224C010008

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 01 $150,000

Abstract: Arizona Loans for Assistive Technology (AzLAT) is a consumer-driven, statewide alternative financing program that makes affordable loans available to Arizona residents with disabilities

for the purchase of AT devices. The program is designed to promote access to AT devices for persons

with disabilities by creating a dignified alternative to traditional loan programs. AzLAT is a loan

guarantee program; loans made to qualified borrowers by the bank are guaranteed by AzLAT in case

of borrower default. The program addresses the needs of persons of low to middle income who have

disabilities, including individuals from underrepresented groups desiring loans to purchase AT, but

due to credit history or income issues would be ineligible for most traditional bank loan programs.

Key elements of consumer support provided by the program include informed consumer choice,

avoidance of unnecessary debt, support for consumers completing the application process, and

support for repaying loans in a timely manner. These elements are provided by the member organizations of the Consumer Support Network and/or the AzLAT Program.
State Technology Assistance Projects 9-5

Alternative Financing Programs

Arkansas

Arkansas Technology Alternative Financing Project (AFP)

Arkansas Rehabilitation Services

Department of Workforce Education

1616 Brookwood Drive

P.O. Box 3781

Little Rock, AR 72203

sogaskin@ars.state.ar.us

http://www.arsinfo.org

Principal Investigator: Sue Gaskin

Public Contact: 501/683-6052; Fax: 501/296-1141

Project Number: H224C010009

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $1,200,000

Other funding: FY 01 $400,000 (State of Arkansas)

Abstract: This program administers a revolving loan fund program of approximately $1.6 million so

Arkansas residents with disabilities can secure the technology they need. Activities include: (1)

establishing a solid infrastructure that enables the AFP to continue indefinitely, with a consumerweighted Loan Fund Committee that is integrally involved in developing the guidelines that drive

the AFP’s implementation and serve as an ongoing resource; (2) designing and implementing an

aggressive marketing campaign to assure that knowledge of this important resource is widespread;

(3) making loans available for individuals with disabilities for up to $50,000 with 20-year terms,

allowing them to purchase technology regardless of age and financial status when the capacity to

repay the loan exists. The result is that thousands of Arkansans have enhanced access to loans with

flexible terms. Applicants are offered information and assistance to assure they have what they need

to make truly informed choices. Additionally, consumer advocacy groups and others receive training

on how to assist consumers in obtaining needed technology through this revolving loan fund.
9-6 State Technology Assistance Projects

Alternative Financing Programs

Florida

Florida Alternative Financing Program

Florida Alliance for Assistive Technology, Inc.

1020 East Lafayette Street, Suite 110

Tallahassee, FL 32301-4546

faast@faast.org

http://faast.org

Principal Investigator: Terry Ward, PhD, 850/487-3278

Public Contact: Ben Greve, Program Manager, 800/322-7881 (V/TTY, in state, information and

referral only); 850/487-3278 (V/TTY); 850/487-2850 (TTY/Fax); Fax: 850/487-2805

Project Number: H224C010001

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 01 $630,000

Abstract: The Florida Alliance for Assistive Services and Technology, Inc. (FAAST), administers a

consumer directed alternative financing program for the state of Florida that increases access to and

funding for AT. The program assures that Floridians with disabilities, and their family members, can

obtain low-interest, longer-term loans that enable them to select and purchase AT and services. This

program partners with the Florida Department of Education and the Florida Association for Centers

for Independent Living (FACIL), which assists in recruiting local centers for independent living

(CILs) in consumer education. The CILs are the focal point of consumer counseling regarding

application, selection of devices and services, and assistance with completion of paperwork.
State Technology Assistance Projects 9-7

Alternative Financing Programs

Illinois

Techconnect Low Interest Loan Program: Alternative Financing

Program

Illinois Assistive Technology Project

1 West Old State Capitol Plaza, Suite 100

Springfield, IL 62701-1200

iatp@iltech.org

http://www.iltech.org

Principal Investigator: Wilhelmina Gunther

Public Contact: Sue Castles, Project Director, 800/852-5110 (V/TTY, in state only); 217/522-7985

(V); 217/522-9966 (TTY); Fax: 217/522-8067

Project Number: H224C010022

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $2,250,000

Abstract: In the Illinois alternative financing program individuals with disabilities and their families

or guardians, who historically have had difficulty obtaining or repaying traditional bank loans, are

provided assistance in borrowing money to obtain the AT they need. In some cases the program also

assists in establishing a positive credit history. The program lowers interest rates, offers extended

repayment plans, and relaxes standards for determining credit worthiness. Interest earned by the

program on low-risk investments is used to re-capitalize the fund. Statewide infrastructure allows

multiple entry points for completing the loan application and obtaining additional supports regarding

budgeting and financial planning. The program is a public-private partnership; in addition to the

state, the other partners are the Illinois AT Project, the program administrator; the state’s Centers for

Independent Living, who handle outreach, marketing, assistance with loan processing, consumer

training on budgeting, and serve on the application review committee; Town and County Bank, the

financial lending institution, and MSF&W, a software consulting firm that develops an accessible

online loan application program.
9-8 State Technology Assistance Projects

Alternative Financing Programs

Kansas

Assistive Technology for Kansans Alternative Financing Program

University of Kansas Center for Research, Inc.

Schiefelbusch Institute for Life Span Studies

2601 Gabriel Avenue

P.O. Box 738

Parsons, KS 67357

ssack@ukans.edu

http://www.atk.lsi.ukans.edu

Principal Investigator: Sara H. Sack, PhD, 316/421-8367

Public Contact: Assistive Technology for Kansans, 800/526-3648 (800/KAN DO IT, in state only);

316/421-8367 (V/TTY); Fax: 316/421-0954 (Fax/TTY)

Project Number: H224C000011

Start Date: October 1, 2000

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $742,576; FY 01 (No-cost extension through 9/30/02)

Abstract: The Assistive Technology for Kansans project (ATK) and the Kansas Assistive Technology Cooperative (KATCO) are working together to expand personal financing options for the purchase of assistive devices or services. The alternative financing program is operated by KATCO, a

nonprofit organization, established and directed by persons with disabilities. KATCO currently

manages a revolving loan program and operates a loan guarantee program through both a regional

and a statewide credit union. The new program supports the expansion of the scope and utility of the

current AT loan program. The program addresses issues related to the operation of the two loan

programs. Specifically, public awareness efforts assure that statewide coverage and supports are in

place to expand the capacity to make loans. Individual Development Accounts enable individuals

with disabilities to save money for AT devices and services without declaring the money saved as an

asset. KATCO goals are: (a) to expand the consumer services offered, including financial planning

and credit restoration for persons with disabilities; (b) to expand its AT cooperative services through

strategies such as group purchasing and buying in bulk; (c) to explore the feasibility of operating a

multistate cooperative; and (4) to explore the feasibility of operating a consumer run financial cooperative, generally known as a credit union.
State Technology Assistance Projects 9-9

Alternative Financing Programs

Kentucky

Loan Initiative Networking Kentuckians for Assistive Technology

(LINK-AT)

Kentucky Department of Vocational Rehabilitation

Cabinet for Workforce Development

209 St. Clair Street

Frankfort, KY 40601

nancye.hanson@mail.state.ky.us

http://www.kyatloan.org

Principal Investigator: Dave Matheis, 502/564-4440

Public Contact: Nancy Hanson, 859/246-2540; 877/675-0195 (in state only); Fax: 859/246-2545

Project Number: H224C010021

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 01 $1,050,000

Abstract: In this program a unique collaboration among public and private partners provides AT

loans to Kentuckians with disabilities. The goals of LINK-AT include: (1) increasing access to loans

in all areas of the state, (2) increasing awareness of the loan program among consumers and their

families and caregivers, (3) providing loans in a timely and efficient manner, (4) providing loans to

individuals who may not otherwise be able to access traditional lending programs, (5) increasing the

overall lending capacity of the Kentucky Assistive Technology Loan Corporation (KATLC) to $2.5

million, and (6) developing permanent financial support for the loan program. The primary partners

include KATLC, the Kentucky Department for Vocational Rehabilitation, Fifth-Third Bank of Kentucky, the Kentucky Housing Corporation (KHC), the Kentucky Assistive Technology Service

(KATS) Network, the Kentucky Developmental Disabilities Council, five centers for independent

living, and six AT resource centers.
9-10 State Technology Assistance Projects

Alternative Financing Programs

Louisiana

Louisiana Alternative Financing Program

Louisiana Department of Health and Hospitals

LATAN

P.O. Box 14115

Baton Rouge, LA 70898

cpourciau@latan.org

http://www.latan.org

Principal Investigator: Julie M. Nesbit, 225/925-9500 (V/TTY)

Public Contact: Clara Pourciau, 800/270-6185 (V/TTY); 225/925-9500 (V/TTY); Fax: 225/925-

9560

Project Number: H224C010024

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $1,500,000

Abstract: This reduced-interest, fixed-rate, and extended-term AT loan program is available for

Louisiana residents of all ages and income brackets (and especially those of low and middle incomes), with all types of disabilities. The project makes available guaranteed and non-guaranteed

loans for a broad variety of AT devices and services, including assessments, training, and extended

warranties. Built into the project budget are resources such as financial, credit, and peer-to-peer

counseling (through centers for independent living) as needed by consumers. The program administrators implement a structured program evaluation that measures overall effectiveness; the evaluation

takes into consideration consumer feedback and requested modifications to the loan program. The

program is coordinated by the Louisiana Assistive Technology Access Network (LATAN).
State Technology Assistance Projects 9-11

Alternative Financing Programs

Maryland

The Assistive Technology Guaranteed Loan Program: Partnerships for

Maxium AT Access

State of Maryland

Maryland Technology Assistance Program

2301 Argonne Drive, Room T17

Baltimore, MD 21218

loans@mdtap.org

http://www.mdtap.org

Principal Investigator: Michael Dalto

Public Contact: Tony Rice, Assistant Director, 410/554-9230; 800/832-4827; Fax: 410/554-9237

Project Number: H224C000009

Start Date: October 1, 2000

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $500,000; FY 01 (No-cost extension through 9/30/02)

Abstract: The Assistive Technology Guaranteed Loan Program provides loan guarantees and interest buy-downs for AT loans when the end user is a Maryland resident with a disability. Two lenders

currently participate in the program providing both guaranteed and non-guaranteed loans, while a

third offers only non-guaranteed loans. Two lenders provide discounted interest rates for non-guaranteed loans, eliminating the need for the program to buy-down these rates. The program is soliciting

additional partnerships and more flexible criteria to offer applicants a broader range of options and to

maximize the number of borrowers the program can serve. The program is administered by an

independent, community-based, volunteer Board of Directors. The Board oversees all operations,

including setting policy, approving and declining loan guarantees and interest subsidies, establishing

agreements with participating lenders and managing fiscal affairs. Staff provide information and

referral to applicants; handle administrative tasks related to loan guarantees and interest buy-downs;

and market the program through direct mail, partnerships with a broad coalition of disability groups

and service organizations, articles in newsletters and newspapers, and presentations on request. The

program has created partnerships to enhance AT access for borrowers. The Maryland AT Co-Op

provides exclusive discounts on AT purchase for borrowers to make AT more affordable. Benefits

InfoSource delivers assistance to enable borrowers to use SSI and SSDI work incentives to retain or

increase cash benefits while working or pursuing careers; the added income makes AT loan payments more affordable. The Maryland Centers for Independent Living offer counseling to borrowers

referred through the program.
9-12 State Technology Assistance Projects

Alternative Financing Programs

Maryland

The Assistive Technology Guaranteed Loan Program: Partnerships for

Maximum AT Access

State of Maryland Office of Individuals with Disabilities

Maryland Technology Assistance Program

2301 Argonne Drive, T17

Baltimore, MD 21218-1696

loans@mdtap.org

http://www.mdtap.org

Principal Investigator: Michael Dalto

Public Contact: Tony Rice, Assistant Director, 410/554-9233; 800/832-4827; Fax: 410/554-9237

Project Number: H224C010016

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $1,104,974

Abstract: Maryland’s Assistive Technology Guaranteed Loan Program (ATGLP) provides loan

guarantees and interest buy-downs for AT loans for Maryland residents who have a disability. The

ATGLP guarantees loans of $500 to $30,000, with loan terms ranging of one to seven years. In its

first 19 months of operation, the program approved 95 guaranteed loans (totaling more than

$970,000 in principal) and 7 nonguaranteed loans (totaling more than $46,000 in principal). The

project has approved loans for a high percentage of the applicants from traditionally underserved

groups. Innovative efforts from the project’s partners include: (1) offering guaranteed loans or

discounted rates for non-guaranteed loans from multiple lenders, (2) reducing costs for AT purchase,

(3) increasing income and resources for borrowers to make AT more affordable, (4) building alternative resources for AT evaluation and training, and (5) recycling computer equipment. The Maryland

Centers for Independent Living offer consumer counseling. The program funds a wide range of AT,

excluding only building modifications to rental units.
State Technology Assistance Projects 9-13

Alternative Financing Programs

Michigan

Michigan Assistive Technology Loan Fund

Michigan Disability Rights Coalition

740 West Lake Lansing Road, Suite 400

East Lansing, MI 48823

miatloanfund@aol.com

http://www.mi-atlf.org

Principal Investigator: Norm DeLisle

Public Contact: Kathryn Wyeth, Operations Director, 517/333-2477, ext. 35; Fax: 517/333-2677

Project Number: H224C010015

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $431,700

Other Funding: FY 01 $143,900 (Herbert H. and Grace A. Dow Foundation)

Abstract: The Michigan Assistive Technology Loan Fund allows people with disabilities in Michigan to obtain AT equipment and services either through project loans or through other means. Key

objectives of the first project year include: (1) expand statewide from the current three pilot counties,

(2) expand marketing of the fund, and (3) grow project resources into a self-sustaining fund. Four

key attributes distinguish the Loan Fund as an effective tool: (a) people with disabilities with extensive experience with AT developed it and are implementing it; (b) the fund demonstrates its commitment to client-driven, client-chosen services by the principles and values it has adopted; (c) the fund

enjoys strong support statewide because a wide variety of stakeholders participated in a genuinely

collaborative process; and (d) the Loan Fund partners with local Centers for Independent Living

(CILs) to serve as local intake and counseling points for loan applicants. While the Fund is strongly

committed to the principle that persons with disabilities should make their own choices about AT,

CILs are uniquely situated to provide AT information to assure applicants can make informed

choices. Additionally, the CILs are knowledgeable about other sources of funding than loans and

about AT services such as training, equipment trial before purchase, and repair, all of which enhance

AT success. There is no lower limit for loans, and the upper limit this pilot year is $20,000.
9-14 State Technology Assistance Projects

Alternative Financing Programs

Missouri

Assistive Techology Financial Loan Program - $how-Me Loans

State of Missouri

Missouri Assistive Technology Project

4731 South Cochise, Suite 114

Independence, MO 64055-6975

matpmo@qni.com

http://www.dolir.state.mo.us/matp

Principal Investigator: Diane Golden, PhD, 816/373-5193

Public Contact: 800/647-8557 (V, in state only)800/647-8558 (TTY, in state only); 800/647-8558

(TTY, in state only); 816/373-5193 (V); 816/373-9315 (TTY); Fax: 816/373-9314

Project Number: H224C000015

Start Date: October 1, 2000

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $550,000; FY 01 (No-cost extension through 9/30/02)

Abstract: The Missouri Assistive Technology Council is establishing “$how-Me Loans”, a comprehensive statewide alternative financing program for assistive technology. The purpose of “$how-Me

Loans” is to empower individuals with disabilities to achieve greater independence, productivity, and

integration through increased access to AT. The program is being designed to provide loans with

rates and terms more favorable than those available commercially. The funds may be used to purchase AT that enables a person with a disability to be more independent in a home, workplace,

community, or other environment. Examples of AT include, but are not limited to, access modifications to a vehicle, such as a wheelchair lift or hand controls; augmentative communications devices;

stairway lifts; hearing aids; motorized wheelchairs; and housing access modifications such as a

wheelchair ramp, a roll-in shower, widening of doorways, and many others
State Technology Assistance Projects 9-15

Alternative Financing Programs

Nevada

Nevada Assistive Technology Loan Fund

Department of Employment, Training, and Rehabilitation

3656 Research Way, Suite 32A

Carson City, NV 89706

tmbutterworth@nvdetr.org

Principal Investigator: Todd Butterworth

Public Contact: 775/687-4452; Fax: 775/687-3292

Project Number: H224C010004

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $902,612

Abstract: The Assistive Technology Loan Fund (ATLF) offers Nevadans of all ages and all disabilities low-interest-rate loan services for the purchase of AT that supports and improves the independence of people with disabilities and their families. Loans are also offered to small businesses that

seek to make their facilities more accessible. Loans are made by a banking partner and are guaranteed by the ATLF loan fund; for every dollar in the loan fund, the bank agrees to loan out two dollars. The ATLF has existed as a small but effective loan guarantee program for nearly a decade.

Recognizing its value as a “hand up” to Nevadans with disabilities and their families, policy makers

in the state have infused the program with substantial loan guarantee and operating capital. A recent

partnership with a large community bank furthers ATLF’s statewide presence. The ATLF is operated

in partnership with Nevada’s Independent Living Services Program, the state’s largest provider of

AT devices for daily living. This partnership ensures that applicants have their needs fulfilled

through one or both of the programs.
9-16 State Technology Assistance Projects

Alternative Financing Programs

Oklahoma

Oklahoma Alternative Financing Program (AFP)

Oklahoma State University

Seretean Wellness Center

1514 West Hall of Fame

Stillwater, OK 74078-2026

mljwell@okstate.edu

http://okabletech.okstate.edu

Principal Investigator: Linda Jaco

Public Contact: 800/257-1705 (V/TTY); 405/744-9864; Fax: 405/744-2487

Project Number: H224C010005

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $225,000

Abstract: This project enhances and maintains the Assistive Technology Lending Program, a partnership between ABLE Tech and BancFirst of Stillwater established in 1999. The AFP is operated

by the Oklahoma Assistive Technology Foundation (OkAT), a community-based organization established and directed by persons with disabilities. The AFP increases access to and funding of AT for

Oklahomans with disabilities or families that have dependents with disabilities. ABLE Tech assures

that Oklahomans with disabilities and their family members have access to low-interest loans or

guaranty loans with longer terms and customized underwriting standards for the purchase of AT.
State Technology Assistance Projects 9-17

Alternative Financing Programs

Pennsylvania

Alternative Financing Program

Temple University

Institute on Disabilities/UAP

1301 Cecil B. Moore Avenue, 423 Ritter Annex

Philadelphia, PA 19122

piat@astro.temple.edu

http://www.temple.edu/inst_disabilities/PIAT

Principal Investigator: Diane Nelson Bryen, PhD, 214/204-1356

Public Contact: Amy S. Goldman, 800/204-7428 (V); 800/750-7428 (TTY); 215/204-3862 (V);

215/204-1356 (V/TTY); Fax: 215/204-9371

Project Number: H224C000001

Start Date: October 1, 2000

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $500,000; FY 01 (No-cost extension through 9/30/02)

Abstract: The Pennsylvania Assistive Technology Foundation (PATF), a community-based

501(c)(3) organization, was created by the Institute on Disabilities/UAP in response to the need for

an alternative financing mechanism. The program is administered by the Institute on Disabilities/

UAP and includes $500,000 in federal funds and $800,000 in nonfederal funds. Institute on Disabilities/UAP activities under the AFP grant include: (1) develop the PATF’s infrastructure to the point

that it has adequate staff and operational resources to operate independently of federal support; (2)

expand the present program through the identification of additional funds for loans of $3,000 and

more, and additional funds for the loan guarantee; (3) create a revolving loan program to allow for

“small” loans, e.g. those under $3,000, which the current lender deems too burdensome to handle;

(4) increase outreach and ease of access to the program, including the establishment of an network of

volunteer “application centers;” and (5) provide for external evaluation of the quality of customer

service, consumer choice, timeliness, and outcomes of the revolving and guarantee loan programs.
9-18 State Technology Assistance Projects

Alternative Financing Programs

Pennsylvania

Minority Outreach Program for Alternative Financing for Assistive

Technology

Temple University

Institute on Disabilities/UAP

1301 Cecil B. Moore Avenue, 423 Ritter Annex

Philadelphia, PA 19122

vdel@nimbus.temple.edu

http://www.temple.edu/inst_disabilities/PIAT

Principal Investigator: Diane Nelson Bryen, PhD; Amy S. Goldman, 215/204-1356 (Bryen); 215/

204-3862 (Goldman)

Public Contact: Virginia Del Sordo, 800/204-7428 (V, in state only); 800/750-7428 (TTY); 215/

204-0452 (V); 215/204-1356 (V/TTY); Fax: 215/204-9371

Project Number: H224C010025

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $450,000

Abstract: This outreach and demonstration program targets African-Americans, Hispanic/Latinos,

and Southeast Asians and identifies effective strategies for enhancing minority access to alternate

financing programs (AFP) for assistive technology. The project includes the following goals: (1)

increase outreach for and ease of access to alternative financing for AT for target minority groups

through the creation of a network of racially- and ethnically-based information centers; (2) increase

the capacity of the Pennsylvania Assistive Technology Foundation (PATF) and its network of subcontracted application centers to provide effective, culturally competent services; (3) attract more

minority borrowers through the creation of partnerships with minority-owned banks and lending

institutions; (4) create options that make loans more affordable to individuals who come to the PATF

through minority banks; (5) identify effective, replicable program structures that increase the ability

of target minority groups to access AT and AT financing; and (6) formalize and disseminate the

model to a broad spectrum of entities, including other AT Act projects, service providers known and

used by the underrepresented groups, disability agencies, groups run by and for people with disabilities, generic banking organizations, and disability, minority, and banking stakeholders.
State Technology Assistance Projects 9-19

Alternative Financing Programs

Utah

Alternative Financing Program

Utah State University

Utah Assistive Technology Foundation

6835 Old Main Hill

Logan, UT 84322-6835

uatf@cpd2.usu.edu

http://www.uatf.org

Principal Investigator: Martin E. Blair, 435/797-3886

Public Contact: Daryl McCarty, 801/273-7239; Fax: 801/273-7239

Project Number: H224C000004

Start Date: October 1, 2000

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $500,000; FY 01 (No-cost extension through 9/30/02)

Abstract: The Utah Assistive Technology Foundation has a collaborative partnership with First

Security Bank to provide an interest buy-down and small grant program to help people with disabilities purchase AT devices and services. The activities are designed to expand the benefits and services

of the Foundation by: (1) decreasing the loan amount charged on loans for the purchase of AT to

approximately 1 percent of the loan value (currently 2 percent); (2) increase the grant amount applied

to loan principle for the purchase of AT; (3) increase the interest buy-down amount for modified

vehicles; (4) increase public awareness activities with regard to the Foundation; and (5) increase the

endowment fund of the Foundation to provide ongoing funding for the activities listed above. Expanding the current alternative financing system for AT devices and services enables greater numbers

of consumers with disabilities, their family members, personal assistants, advocates, and others to

increase independence in home, school, work and community settings. The public awareness activities are targeted to individuals with disabilities in both urban and rural areas of Utah.

Underrepresented populations such as Native American, Hispanic and the aging are the specific

focus of public awareness activities. The Foundation was developed by several entities in the state

under the direction of the Utah Assistive Technology Program (UATP), Utah’s AT Act state program.
9-20 State Technology Assistance Projects

Alternative Financing Programs

Utah

Utah Alternative Financing Program for Assistive Technology

Utah State University

Center for Persons with Disabilities

6835 Old Main Hill

Logan, UT 84322

uatf@cpd2.usu.edu

http://www.uatf.org

Principal Investigator: Marilyn Hammond, PhD

Public Contact: 800/524-5152; 435/797-3811; Fax: 435/797-2355

Project Number: H224C010013

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $525,000

Abstract: The Utah Alternative Financing Program for Assistive Technology expands the benefits

and services of the Utah Assistive Technology Foundation (UATF) by: (1) developing and implementing a consumer- and minority-responsive infrastructure; (2) maintaining the project’s zeropercent-interest-buy-down for devices and services, increasing the loan interest buy-down amount

for modified vehicles, and increasing the available endowment fund; (3) developing and evaluating a

comprehensive outreach and public awareness plan that includes targeting underrepresented and

culturally diverse communities; and (4) designing and implementing a comprehensive process and

outcome evaluation plan. By expanding the current alternative financing system for AT devices and

services, the project enables greater numbers of children and adults with disabilities and their family

members to increase independence in home, school, work, and community settings.
State Technology Assistance Projects 9-21

Alternative Financing Programs

Virginia

Alternative Financing Technical Assistance Project

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)

1700 North Moore Street, Suite 1540

Arlington, VA 22209-1903

http://www.resna.org/AFTAP

Principal Investigator: Nancy Meidenbauer

Public Contact: 703/524-6686. ext. 304 (V); 703/524-6639 (TTY); Fax: 703/524-6630

Project Number: H224C000200

Start Date: October 1, 2000

Length: 24 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $200,000; FY 01 $299,999

Abstract: The Rehabilitation Engineering and Assistive Technology Society of North America

(RESNA) operates the Alternative Financing Technical Assistance Project (AFTAP) to support states

in establishing and maintaining Alternative Financing Programs (AFP). The purpose of the project is

to provide technical assistance (TA) to states in developing AFPs that reduce barriers to the availability of AT and create new sources of funding for AT services and devices for people with disabilities of all ages. Technical assistance and information dissemination and utilization activities have

been designed in order to achieve the project’s goals. These goals are: (1) to provide timely, responsive, and proactive TA using a comprehensive model for delivery of TA, and (2) to address the TA

needs of the states currently receiving Title III funds and those states that are in the process of preparing applications for AFP. The delivery strategies include on-site visits by expert consultants; a

national meeting focused on issues related to developing, implementing, and maintaining financial

loan programs; targeted research publications; and electronic services. A Web-based outcome data

collection instrument enables collection of uniform data across state programs to assist in determining the outcomes and impact of the availability of AT AFPs, by region and across the country, for

individuals with disabilities.
9-22 State Technology Assistance Projects

Alternative Financing Programs

Virginia

Alternative Financing Program

Virginia Department of Rehabilitative Services

Virginia Assistive Technology System (VATS)

8004 Franklin Farms Drive

P.O. Box K300

Richmond, VA 23288-0300

http://www.vats.org

Principal Investigator: Kenneth Knorr

Public Contact: 804/662-9995; Fax: 804/662-9478

Project Number: H224C000003

Start Date: January 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $1,000,000; FY 01 (No-cost extension through 12/31/02)

Abstract: The Virginia Department of Rehabilitative Services (DRS)/ Virginia Assistive Technology

System (VATS) establishes an Alternative Financing Program (AFP) to increase access to and funding for AT. The program uses the additional funding to increase and enhance the existing loan program. DRS/VATS accomplishes this through a contract with a consumer-controlled organization, the

Assistive Technology Loan Fund Authority (ATLFA) and with SunTrust Bank to provide loan

financing and administration. DRS/VATS partners with all sixteen Virginia Centers for Independent

Living (CILs) to educate consumers of the AFP and provide consumer counseling to applicants

requiring assistance in device selection, application completion, identification of alternative financing sources for AT, as well as for financial counseling.
State Technology Assistance Projects 9-23

Alternative Financing Programs

Virginia

Virginia Alternative Financing Program

Virginia Department of Rehabilitative Services (DRS)

Virginia Assistive Technology System (VATS)

8004 Franklin Farms Drive

P.O. Box K300

Richmond, VA 23288

loanfund@erols.com

http://www.vats.org

Principal Investigator: Kenneth Knorr, 804/662-9995

Public Contact: Mike Scione, 804/662-9993; Fax: 804/662-9478

Project Number: H224C010003

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $2,464,000

Abstract: This program increases access to and funding for AT for individuals with disabilities and

their families, creating a perpetual loan fund. Rehabilitation engineering and AT assessment services

are also provided under the auspices of the program. During this project term, loans are extended to

small businesses and nonprofits so they can purchase AT for employees with disabilities, purchase

AT or modify their facilities prior to hiring an employee with a disability, or modify facilities to

accommodate customers with disabilities. Virginians with disabilities, their family members, and

eligible businesses can also obtain low-interest, longer-term loans for accommodations and the

purchase of AT devices and services through a partnership with the Assistive Technology Loan Fund

Authority (ATLFA), a consumer-controlled organization, and SunTrust Bank, which provides loan

financing and administration. Other partners include Virginia’s Centers for Independent Living,

which provide consumer counseling for device selection, application completion, and financial

counseling.
9-24 State Technology Assistance Projects

Alternative Financing Programs

Wisconsin

WisLoan: A Loan Guaranty Program to Provide Low Interest Loans to

Wisconsin Residents with Disabilities for Purchasing Assistive

Technology

Wisconsin Department of Health and Family Services (DHFS)

Office for Persons with Physical Disabilities (OPPD)

One West Wilson Street, Room 450

P.O. Box 7851

Madison, WI 53707-7851

lauxhm@dhfs.state.wi.us

Principal Investigator: Holly Laux O’Higgins

Public Contact: 608/266-8905; Fax: 608/267-3203

Project Number: H224C010017

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $750,000

Abstract: WisLoan facilitates provision of low interest loans by participating banks so that Wisconsin citizens with disabilities can purchase AT. Independence First, a community-based and consumer-controlled organization, administers WisLoan in partnership with banks and centers for

independent living to provide statewide services such as loan financing and servicing, AT assessments, and technical assistance. Information about WisLoan is disseminated through state and

county human service agencies, CILs, disability organizations, and governor-appointed councils. The

banking partner also disseminates program information and assists in the development of marketing

materials.
State Technology Assistance Projects 9-25

State Technology Assistance Projects State Technology Assistance Projects

Alabama

Alabama Statewide Technology Access and Response Project (STAR)

System for Alabamians with Disabilities

Alabama Department of Rehabilitation Services

2125 East South Boulevard

P.O. Box 20752

Montgomery, AL 36120-0752

tbridges@rehab.state.al.us

http://www.rehab.state.al.us/star

Principal Investigator: Steve Shivers

Public Contact: Ted Bridges, 800/782-7656 (V, in state only); 334/613-3480 (V); 334/613-3519

(TTY); Fax: 334/613-3485

Project Number: H224A30009

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 93 $520,670; FY 94 $540,000; FY 95 $580,000; FY 96 $536,900; FY 97

$574,900; FY 98 $710,052; FY 99 $730,000; FY 00 $688,624; FY 01 $516,468

Abstract: This project addresses nine goals: (1) to establish an organizational structure that maximizes consumer participation; (2) to facilitate interagency collaboration in the development of

policies and procedures concerning technology services; (3) to maximize consumer participation at

all levels of project activities; (4) to establish a statewide consumer and family network; (5) to

develop a statewide consumer-responsive information and referral system; (6) to develop a public

awareness campaign to elevate the understanding of the benefits and use of technology for people

with disabilities; (7) to develop and provide technology training activities for consumers, their

families, professionals, employers, and the general public regarding technology-related issues; (8) to

advance positive policy and funding changes that improve the procurement of and access to technology devices and services; and (9) to develop and implement a project evaluation system and conduct

ongoing needs assessment.
9-26 State Technology Assistance Projects

State Technology Assistance Projects

Alaska

Assistive Technologies of Alaska

Alaska Department of Labor and Workforce Development

Division of Vocational Rehabilitation

1016 West Sixth, Suite 205

Anchorage, AK 99501

james_beck@labor.state.ak.us

http://www.labor.state.ak.us/at/index.htm

Principal Investigator: Jim Beck

Public Contact: 800/478-4378 (V/TTY, in state only); 907/269-3569 (V/TTY); Fax: 907/269-3632

Project Number: H224A990001

Start Date: July 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $563,052; FY 91 $565,205; FY 92 $595,000; FY 93 $748,000; FY 94

$749,298; FY 95 $749,298; FY 96 $693,618; FY 97 $731,618; FY 98 $548,714; FY 99 $368,000;

FY 00 $365,809; FY 01 $365,809

Abstract: Assistive Technologies of Alaska (ATA) is a systems change project funded under the

authority of the Tech Act. ATA has worked to establish a statewide, consumer-responsive system to

improve access to AT. The project has responded to the needs of Alaskans with disabilities by creating training tools and resource documents; establishing a guaranteed loan program; achieving passage of an AT consumer protection law; and setting up a statewide library system for access to

technology. In the last two years, the project is transitioning services to other permanent programs.
State Technology Assistance Projects 9-27

State Technology Assistance Projects

American Samoa

American Samoa Assistive Technology Service (ASATS) Project

Division of Vocational Rehabilitation

Department of Human Resources

Pago Pago, American Samoa 96799

asats2001@yahoo.com

Principal Investigator: Pete P. Galea’i

Public Contact: Edmund Pereira, Program Director, 011/684/699-1529 (V); 011/684/233-7874

(TTY); Fax: 011/684/699-1376

Project Number: H224A30014

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $139,200; FY 94 $150,000; FY 95 $150,000; FY 96 $150,000; FY 97

$150,000; FY 98 $210,000; FY 99 $105,000; FY 00 $150,000; FY 01 $105,000

Abstract: This project addresses four goals: (1) identification, training, and support of people with

disabilities to provide direction and guidance to the American Samoa Assistive Technology Project;

(2) development and implementation of a system for individual and program needs assessment for

AT; (3) development and promotion, in collaboration and in partnership with existing agencies, of a

consumer responsive, culturally appropriate assistive technology service-delivery system; and (4)

development and implementation of a model multiagency information, education, and public awareness system.
9-28 State Technology Assistance Projects

State Technology Assistance Projects

Arizona

Arizona Technology Access Program (AzTAP)

Northern Arizona University

Institute for Human Development

4105 North 20th Street, Suite 260

Phoenix, AZ 85016

jill.oberstein@nau.edu

http://www.nau.edu/ihd/aztap

Principal Investigator: Jill Oberstein, Project Director

Public Contact: 800/477-9921 (V); 602/728-9532 (V); 602/728-9536 (TTY); Fax: 602/728-9535

Project Number: H224A40002

Start Date: October 1, 1994

NIDRR Officer: Judith Fein

NIDRR Funding: FY 94 $507,916; FY 95 $550,000; FY 96 $509,130; FY 97 $547,130; FY 98

$675,531; FY 99 $654,103; FY 00 $654,103; FY 01 $654,103

Abstract: This program increases access to AT services and devices for people with disabilities and

their families and facilitates the development of a coordinated, consumer-responsive AT servicedelivery system. The program includes seven goals: (1) to establish a program infrastructure that is

consumer responsive and promotes system change; (2) to increase consumer involvement; (3) to

increase interagency collaboration and coordination; (4) to increase awareness of the needs for, and

efficacy of, AT services and devices; (5) to increase the competencies and skills of providers and

consumers of AT services and devices; (6) to improve program and fiscal resources; and (7) to

develop and implement protection and advocacy services in support of the program. Priority activities include: information and referral, training and technical assistance, outreach to underrepresented

populations, funding and policy analysis, advocacy, and research.
State Technology Assistance Projects 9-29

State Technology Assistance Projects

Arkansas

Arkansas Increasing Capabilities Access Network (ICAN)

Arkansas Rehabilitation Services

Department of Workforce Education

2201 Brookwood Drive, Suite 117

Little Rock, AR 72202

sogaskin@ars.state.ar.us

http://www.arkansas-ican.org

Principal Investigator: Sue Gaskin

Public Contact: 800/828-2799 (V/TTY, in state only); 501/666-8868 (V/TTY); Fax: 501/666-5319

Project Number: H224A90020

Start Date: October 1, 1989

NIDRR Officer: Judith Fein

NIDRR Funding: FY 89 $503,811; FY 90 $506,078; FY 91 $551,078; FY 92 $725,000; FY 93

$773,929; FY 94 $835,000; FY 95 $835,000; FY 96 $772,951; FY 97 $579,713; FY 98 $386,476;

FY 99 $386,476; FY 00 $386,476; FY 01 $386,476

Abstract: This project’s activities and objectives include establishing a clearinghouse for technology, expanding funding alternatives for technology, creating a consumer-responsive technology

system through legal remedies, expanding outreach programs, increasing system capacity through

education across professional and technical disciplines, and providing information and referral

services.
9-30 State Technology Assistance Projects

State Technology Assistance Projects

California

California Assistive Technology System (CATS)

California Department of Rehabilitation

Independent Living and Systems Change Division

2000 Evergreen

P.O. Box 944222

Sacramento, CA 94244-2220

DLaw@dor.ca.gov

http://www.atnet.org

Principal Investigator: Dennis Law, 916/263-8676 (V)

Public Contact: Colin Corby, 916/263-8677 (V/TTY); Fax: 916/263-8683

Project Number: H224A30008

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $550,000; FY 94 $680,000; FY 95 $900,000; FY 96 $833,000; FY 97

$871,121; FY 98 $1,337,103; FY 99 $1,315,675; FY 00 $1,315,675; FY 01 $986,765

Abstract: This project is administered by a unit within the lead agency, Department of Rehabilitation. It is advised by an Assistive Technology Advisory Committee (ATAC), a majority of whose

members are consumers. The unit administers a transportation and AT loan guarantee program. The

unit contracts with other entities to provide advocacy services, outreach, and training for underserved

and rural populations; establish AT centers in rural counties; and establish a nonprofit organization to

conduct other project activities and continue the project when grant funding ends. The nonprofit unit

(AT Network) operated by the California Foundation for Independent Living Centers (CFILC)

includes a toll-free AT information and referral service (800/390-2699 [V] and 800/900-0706 [TTY],

in state only), a project Web site, an AT news service, public awareness and marketing activities,

interagency coordination, and coordination of system change activities.
State Technology Assistance Projects 9-31

State Technology Assistance Projects

Colorado

Colorado Assistive Technology Project (CATP)

University of Colorado Health Sciences Center

Assistive Technology Partners

1245 East Colfax Avenue, Suite 200

Denver, CO 80218

cathy.bodine@uchsc.edu

http://www.uchsc.edu/atp

Principal Investigator: Cathy Bodine, Project Director

Public Contact: 800/255-3477 (in state only); 303/315-1280 (V); 303/837-8964 (TTY); Fax: 303/

837-1208

Project Number: H224A40014

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $540,140; FY 90 $542,571; FY 91 $577,571; FY 92 $609,538; FY 93

$690,407; FY 94 $780,000; FY 95 $780,000; FY 96 $722,000; FY 97 $541,529; FY 98 $361,019;

FY 99 $361,019; FY 00 $361,018; FY 01 $361,019

Abstract: This project’s activities and objectives include a network of Technology Outreach Centers

throughout the state and a central AT resource center. Project activities include information, referral,

public awareness, training, technical assistance, and electronic networking linkages between local

agencies and the state. Systems-change activities include a task force on policy review and analysis,

ongoing advocacy education, and direct advocacy services through a contract with the state protection and advocacy system.
9-32 State Technology Assistance Projects

State Technology Assistance Projects

Connecticut

Connecticut Assistive Technology Project

Connecticut Department of Social Services

Bureau of Rehabilitation Services

25 Sigourney Street, 11th Floor

Hartford, CT 06106

jficarro@aol.com

http://www.techact.uconn.edu

Principal Investigator: John M. Ficarro

Public Contact: 800/537-2549 (in state only); 860/424-4881 (V); 860/424-4839 (TTY); Fax: 860/

424-4850

Project Number: H224A20013

Start Date: October 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $525,000; FY 93 $554,000; FY 94 $580,000; FY 95 $520,000; FY 96

$500,000; FY 97 $538,000; FY 98 $651,365; FY 99 $629,937; FY 00 $472,453; FY 01 $314,969

Abstract: This program provides Connecticut residents with disabilities a single point of entry for

advocacy, information and referral, peer counseling, and access to objective expert advice and

consultation. This system is founded on the principles of ready access to available technology,

informed choice, coordination, and maximum use of available resources and knowledge. The

project’s low-interest AT revolving loan fund serves as an alternative funding mechanism for individuals ineligible for existing funding streams. The project has developed an equipment recycling

program and is the primary sponsor of an annual AT trade fair. Finally, the program is supported by

an extensive training, education, and public awareness component.
State Technology Assistance Projects 9-33

State Technology Assistance Projects

Delaware

Delaware Assistive Technology Initiative (DATI)

Center for Applied Science and Engineering

University of Delaware

Alfred I. duPont Hospital for Children

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899-0269

dati@asel.udel.edu

http://www.asel.udel.edu/dati

Principal Investigator: Beth A. Mineo Mollica, PhD, 302/651-6836

Public Contact: Sonja Simowitz, Project Coordinator, 800/870-DATI (V/TTY, in state only); 302/

651-6790 (V); 302/651-6794 (TTY); Fax: 302/651-6793

Project Number: H224A10005

Start Date: September 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $501,562; FY 92 $505,146; FY 93 $550,616; FY 94 $620,000; FY 95

$620,000; FY 96 $573,934; FY 97 $611,928; FY 98 $695,827; FY 99 $521,870; FY 00 $347,921;

FY 01 $347,914

Abstract: The DATI project has established county resource centers in each of Delaware’s three

counties. These centers serve as information and equipment resource sites, offering short-term

equipment loans, training and demonstration workshops, and regular informational mailings. DATI

also offers a quarterly newsletter featuring articles on funding, equipment recycling, and general AT

information. DATI assists consumers in locating funding for AT devices and services. Collaboration

among existing state agencies and consumer groups has enhanced further assistive technology

promotion throughout the state.
9-34 State Technology Assistance Projects

State Technology Assistance Projects

District of Columbia

University Legal Services AT Program for the District of Columbia

University Legal Services

300 I Street Northeast, Suite 200

Washington, DC 20002

atpdc@uls-dc.com

http://www.atpdc.org

Principal Investigator: Alicia C. Johns

Public Contact: Information Specialist, 202/547-0198 (V); 202/547-2657 (TTY); Fax: 202/547-

2662

Project Number: H224A30001

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $500,000; FY 94 $550,180; FY 95 $565,000; FY 96 $523,015; FY 97

$557,503; FY 98 $632,503; FY 99 $616,143; FY 00 $616,143; FY 01 $462,107

Abstract: This project’s activities are designed to empower individuals with disabilities; to promote

consumer involvement and advocacy; and provide information, referral, and training as they relate to

accessing assistive technology services and devices; and to identify and improve access to funding

resources. Activities focus on increasing access to AT devices and services for school age children,

public awareness, and demonstrations targeting people who are underserved. The program collaborates with public and private entities, conducts advocacy training specifically for consumers with

disabilities, and implements systems change activities that increase access to, provision of, and

funding for AT devices and services on a permanent basis.
State Technology Assistance Projects 9-35

State Technology Assistance Projects

Florida

Florida Alliance for Assistive Service and Technology (FAAST), Inc.

FAAST, Inc.

1020 East Lafayette Street, Suite 110

Tallahassee, FL 32301-4546

faast@faast.org

http://faast.org

Principal Investigator: Terry Ward, PhD

Public Contact: Ben Greve, Program Manager, 800/322-7881 (V/TTY, in state, information and

referral only); 850/487-3278 (V/TTY); 850/487-2850 (TTY/Fax); Fax: 850/487-2805

Project Number: H224A000001

Start Date: July 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $550,000; FY 93 $995,000 (includes carryover funding); FY 94 $730,000;

FY 95 $700,000; FY 96 $647,983; FY 97 $685,983; FY 98 $922,107; FY 99 $902,700; FY 00

$675,509; FY 01 $450,340

Abstract: FAAST, designed by and for consumers in Florida, provides comprehensive consumer

outreach, awareness, and services. Its consumer-directed board is composed of 51-percent people

with disabilities or family members of individuals with disabilities. Services are provided through

four strategically located regional centers in Tallahassee, Jacksonville, Tampa, and Miami. FAAST’s

mission is to enhance the quality of life for all Floridians with disabilities by promoting access to,

awareness of, and advocacy for AT. Through a seamless supportive network between Florida business and government, FAAST provides AT products and services that enable people with disabilities

to participate fully in independent living, education, work, and recreation.
9-36 State Technology Assistance Projects

State Technology Assistance Projects

Georgia

Georgia Tools for Life

Georgia Department of Human Resources

Division of Rehabilitation Services

2 Peachtree Street Northwest, Suite 35-413

Atlanta, GA 30303-3142

toolsforlife@mindspring.com

http://www.gatfl.org

Principal Investigator: Joy Kniskern

Public Contact: Clinton Fisher, 800/497-8665 (V, in state only); 404/657-3084 (V); 404/657-3095

(TTY); Fax: 404/657-3086

Project Number: H224A10001

Start Date: September 1, 1991

NIDRR Officer: Judith Fein

NIDRR Funding: FY 91 $519,474; FY 92 $520,000; FY 93 $585,000; FY 94 $729,924; FY 95

$729,924; FY 96 $675,683; FY 97 $713,683; FY 98 $888,822; FY 99 $666,617; FY 00 $444,411;

FY 01 $444,411

Abstract: The Georgia Tools for Life program includes training at all levels, public awareness,

funding policy analysis, direct services, device lending libraries, and program evaluation. The hub of

Tools for Life is operated out of the Georgia Division of Rehabilitation Services. Tools for Life is

responsible for seven areas of coordination: (1) policy analysis and improved service delivery, (2)

coordination with consumers, (3) coordination among public and private organizations, (4) training

and technical assistance, (5) public awareness and an information and referral network, (6) advocacy,

and (7) consumer-responsive program evaluation. Tools for Life also coordinates four Technology

Resource Centers, the ReBoot Recycling Service, and is helping to create the Association of Georgians with Disabilities, a consumer association. The association includes financial services, an

advocacy group, a buying co-op, insurance options, and research and development based on member

needs. It also provides technical assistance to Touch the Future, a private, nonprofit organization

collaborating with the Tech Act initiatives in Georgia.
State Technology Assistance Projects 9-37

State Technology Assistance Projects

Guam

Guam System for Assistive Technology (GSAT)

AVP/CEDDARS/GSAT

University of Guam, UOG Station

Mangilao, GU 96923

gsat@ite.net

http://uog2.uog.edu/uap/gsat.html

Principal Investigator: Heidi E. Farra-San Nicolas, PhD, 671/735-2482 (V)

Public Contact: June F. Quitugua, 671/735-2490, ext. 3 (V); 671/734-8378 (TTY); Fax: 671/734-

5709

Project Number: H224A40003

Start Date: October 1, 1994

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 94 $150,000; FY 95 $150,000; FY 96 $150,000; FY 97 $150,000; FY 98

$150,000; FY 99 $150,000; FY 00 $105,000; FY 01 $105,000

Abstract: This project has established a consumer-responsive, comprehensive, territory-wide program of technology-related assistance for people with disabilities to assist in overcoming Guam’s

unique challenges, including limited local funding, lack of trained personnel, few markets and

market incentives, limited information, and limited eligibility for specific federal funding. Additionally, the provision of AT devices and services in the Pacific Basin presents many unique challenges.

Small island systems, such as Guam, have limited budgets, and a harsh tropical-island environment

(salt water, high humidity, and rough terrain) that creates difficulties for equipment repair and maintenance. The remote geographic location makes procurement, adjustments, and custom modifications

to assistive technology equipment extremely difficult and costly. The project emphasizes and supports systems change and advocacy activities that serve to build capacity within existing programs

and with people with disabilities of all ages. GSAT is administered locally by Guam University’s

Center for Excellence in Developmental Disabilities Education, Research, and Service (CEDDERS).
9-38 State Technology Assistance Projects

State Technology Assistance Projects

Hawaii

Assistive Technology Resource Centers of Hawaii (ATRC)

Hawaii Department of Human Services, Vocational Rehabilitation, and Services for the Blind and

Physically Handicapped

414 Kuwili Street, Suite 104

Honolulu, HI 96817

atrc@atrc.org

http://www.atrc.org

Principal Investigator: Barbara Fischlowitz-Leong, Executive Director, 808/532-7110

Public Contact: 800/645-3007 (V/TTY, in state only), 808/532-7110 (V/TTY); Fax: 808/532-7120

Project Number: H224A10023

Start Date: October 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $530,926; FY 92 $530,926; FY 93 $530,926; FY 94 $660,895; FY 95

$678,000; FY 96 $627,618; FY 97 $665,618; FY 98 $754,956; FY 99 $566,217; FY 00 $377,478;

FY 01 $377,478

Abstract: Assistive Technology Resource Centers of Hawaii (ATRC) provides information and

training on AT devices, services, and funding resources. The organization conducts presentations and

demonstrations in the community to increase AT awareness and promote self-advocacy among

people with disabilities. ATRC offers classes on basic software and AT software at the new Technology Center. Open lab time for personal computers is also available. ATRC operates six equipment

loan banks throughout Hawaii that give people the change to try out AT devices. ATRC also offers

equipment for purchase and financial assistance for qualified individuals. The agency partners with a

variety of groups including consumers, educators, state agencies, and private organizations. An

advisory council provides input from consumers and service providers. The organization also collaborates with state agency officials through its Policy Coordinating Committee who are appointed

by the Governor.
State Technology Assistance Projects 9-39

State Technology Assistance Projects

Idaho

Idaho Assistive Technology Project

University of Idaho

129 West Third Street

Moscow, ID 83843-4401

seile861@uidaho.edu

http://www.ets.uidaho.edu/idatech

Principal Investigator: Ron Seiler, Project Director

Public Contact: Susan House, Information Specialist, 800/432-8324 (V/TTY); 208/885-3559 (V/

TTY); Fax: 208/885-3628

Project Number: H224A20017

Start Date: September 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $529,436; FY 93 $676,680 (includes carryover funding); FY 94 $620,000;

FY 95 $634,246; FY 96 $587,115; FY 97 $625,115; FY 98 $719,907; FY 99 $698,479; FY 00

$539,000; FY 01 $349,240

Abstract: The Idaho Assistive Technology Project is managed by the Center on Disabilities and

Human Development at the University of Idaho. The project engages in systems change activities,

training, materials development, information dissemination, and advocacy activities directed at

increasing the availability of assistive devices and services to Idahoans who have disabilities. A

customer board directs the overall activities of the project and engages in a process of barrier identification and elimination. Major project components include training for consumers and service

providers about AT, funding and loan programs for AT, advocacy, direct service provision through

five regional resource centers, and systems change that addresses policy, practice, and legislation.
9-40 State Technology Assistance Projects

State Technology Assistance Projects

Illinois

Illinois Assistive Technology Project (IATP)

IATP

1 West Old State Capitol Plaza, Suite 100

Springfield, IL 62701

iatp@iltech.org

http://www.iltech.org

Principal Investigator: Wilhelmina Gunther

Public Contact: Sherry Edwards, 800/852-5110 (V/TTY, in state only); 217/522-7985 (V/TTY);

217/522-9966 (TTY); Fax: 217/522-8067

Project Number: H224A90038

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $515,300; FY 90 $517,619; FY 91 $617,619; FY 92 $620,000; FY 93

$750,000; FY 94 $923,271; FY 95 $923,271; FY 96 $833,121; FY 97 $640,997; FY 98 $427,332;

FY 99 $647,332; FY 00 $427,332; FY 01 $427,332

Abstract: This project’s activities and objectives include information and referral services highlighting available technology and services, comprehensive advocacy training for people with disabilities

and their families, and opportunities to explore AT options in the demonstration center. The project

has statewide consumer involvement. Consumers have input into all facets of the project’s operation,

from establishing goals and objectives to implementing the activities.
State Technology Assistance Projects 9-41

State Technology Assistance Projects

Indiana

ATTAIN Inc. (Assistive Technology Through Action in Indiana)

ATTAIN Inc.

2346 South Lynhurst Drive, Suite 507

Indianapolis, IN 46241

cfulford@attaininc.org

http://attaininc.org

Principal Investigator: Cris Fulford, Executive Director

Public Contact: Cyrece Scroggins, 317/486-8808 (V); 317/486-8809 (TTY); Fax: 317/486-8809

Project Number: H224A00027

Start Date: July 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $521,480; FY 91 $541,277; FY 92 $565,277; FY 93 $660,288; FY 94

$726,892; FY 95 $726,892; FY 96 $672,877; FY 97 $710,877; FY 98 $533,158; FY 99 $355,439;

FY 00 $355,439; FY 01 $355,439

Abstract: Assistive Technology Through Action in Indiana (ATTAIN) has primary responsibility for

the Indiana Technology-Related Assistance Program. The project promotes: community-based,

technology-related services and systems change through outreach and training; advocacy on funding

issues; policy review; position statements; and assessments.
9-42 State Technology Assistance Projects

State Technology Assistance Projects

Iowa

Iowa Program for Assistive Technology

Iowa University Affiliated Program

Center for Disabilities and Development

100 Hawkins Drive, Room S295

Iowa City, IA 52242-1011

infotech@uiowa.edu

http://www.uiowa.edu/infotech

Principal Investigator: Jane Gay, RN, 319/356-4463

Public Contact: Information Specialist, 800/331-3027 (V/TTY); Fax: 319/356-8284

Project Number: H224A00028

Start Date: April 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $557,322; FY 91 $594,287; FY 92 $595,289; FY 93 $700,314; FY 94

$735,000; FY 95 $735,000; FY 96 $680,382; FY 97 $718,382; FY 98 $538,787; FY 99 $359,191;

FY 00 $359,191; FY 01 $359,191

Abstract: This project conducts awareness and training programs and collaborates with other systems-change efforts. The information and referral portion of the Iowa program, InfoTech, provides

information on new and used adaptive equipment, funding information, and a newsletter. The goals

and objectives of the Iowa Program are developed and implemented through an extensive process

that involves consumers, advocacy organizations, private and public service providers, regional and

state agencies, third-party payers, and entities not traditionally associated with AT services.
State Technology Assistance Projects 9-43

State Technology Assistance Projects

Kansas

Assistive Technology for Kansans Project

University of Kansas

Life Span Institute

2601 Gabriel Avenue

P.O. Box 738

Parsons, KS 67357

ssack@ku.edu

http://www.atk.lsi.ukans.edu

Principal Investigator: Charles R. Spellman, EdD; Sara H. Sack, PhD

Public Contact: 800/526-3648 (800/KAN DO IT, in state only); 316/421-8367 (V/TTY); Fax: 316/

421-0954 (Fax/TTY)

Project Number: H224A30013

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 93 $515,000; FY 94 $529,999; FY 95 $550,000; FY 96 $513,758; FY 97

$551,758; FY 98 $665,404; FY 99 $643,976; FY 00 $643,876; FY 01 $483,077

Other Funding: FY 93 $89,029 (Kansas Rehabilitation Services); FY 95 $395,000 (KRS); FY 96

$780,000 (KRS); FY 01 $61,906 (KRS)

Abstract: Through consumer involvement and leadership by the Kansas University Program at

Parsons, this project engages in activities that are designed to result in laws, regulations, policies,

practices, or organizational structures that promote consumer-responsive programs that increase

access to assistive technology devices and services. Through subcontracts with organizations across

the state, the project operates five Regional Assistive Technology Access Sites, provides a toll-free

number that connects callers directly to the appropriate Regional Access Site, manages an Interagency Equipment Loan System, coordinates the statewide AT distance learning program, conducts a

three-day Assistive Technology Conference, and leads a policy analysis and legislative alert effort.
9-44 State Technology Assistance Projects

State Technology Assistance Projects

Kentucky

Kentucky Assistive Technology Service (KATS) Network

KATS Network Coordinating Center

8412 Westport Road

Louisville, KY 40242

katsnet@iglou.com

http://www.katsnet.org

Principal Investigator: J. Chase Forrester, JD, Project Director

Public Contact: Ronji Dearborn, 800/327-5287 (V/TTY, in state only); 502/327-0022 (V/TTY);

502/327-9855 (TTY); Fax: 502/327-9974

Project Number: H224A90002

Start Date: October 1, 1989

NIDRR Officer: Judith Fein

NIDRR Funding: FY 89 $535,102; FY 90 $537,510; FY 91 $577,102; FY 92 $680,000; FY 93

$710,108; FY 94 $800,000; FY 95 $800,000; FY 96 $740,552; FY 97 $555,414; FY 98 $370,276;

FY 99 $370,276; FY 00 $370,276; FY 01 $370,276

Abstract: This project is a statewide network of organizations and individuals connecting to create a

consumer-driven, collaborative system to make assistive technology information, devices, and

services easily obtainable for people of any age or disability. In addition to its primary role in the

development and coordination of activities among state agencies and organizations that facilitate

access to, provision of, and funding for AT devices and services, the Coordinating Center staff

conducts information and referral services and disseminates information. Associated organizations

provide training activities, assessments and evaluations, consultations on appropriate technologies,

technical assistance, operate an equipment recycling and lending program and implement a low

interest loan program. Consumers represent a majority of the advisory board membership.
State Technology Assistance Projects 9-45

State Technology Assistance Projects

Louisiana

Louisiana Assistive Technology Access Network (LATAN)

LATAN

P.O. Box 14115

Baton Rouge, LA 70898-4115

cpourciau@latan.org

http://www.latan.org

Principal Investigator: Julie M. Nesbit

Public Contact: Clara Pourciau, 800/270-6185 (V/TTY); 225/925-9500 (V/TTY); Fax: 225/925-

9560

Project Number: H224A10028

Start Date: September 1, 1991

NIDRR Officer: Judith Fein

NIDRR Funding: FY 91 $502,566; FY 92 $505,398; FY 93 $555,398; FY 94 $631,095; FY 95

$660,000; FY 96 $610,955; FY 97 $648,955; FY 98 $791,475; FY 99 $593,606; FY 00 $395,738;

FY 01 $395,738

Abstract: Louisiana Assistive Technology Access Network (LATAN) is an advocacy and systems

change project whose mission is to ensure that Louisiana citizens with functional limitations who

want AT have what they need and are able to use it. Major program initiatives include: (1) consumer

involvement, empowerment, and training; (2) advocacy and systems change; (3) outreach; (4) interagency coordination; and (5) provider training. Area programs provide the opportunity for LATAN

to reach rural and inner-city areas, where a majority of ethnic minorities and elderly reside. The

project provides information about aids that enable an individual to live at home, work, learn, and

recreate. It also provides information about the services needed to acquire and use these assistive

devices. Members of the project staff provide training that empowers individuals to self-advocate

successfully for the aids they need. LATAN also advocates for increased access to assistive technology through public and private agencies and entities. Training is provided to increase the skills of

case managers, personal service assistants, rehabilitation counselors, educators, therapists, and other

providers and support personnel to recognize the benefits and uses of, and the need for, various types

of AT devices and services. A consumer-majority board directs LATAN.
9-46 State Technology Assistance Projects

State Technology Assistance Projects

Maine

Maine Consumer Information and Technology Training Exchange

(Maine CITE)

Maine CITE Coordinating Center

46 University Drive

Augusta, ME 04330

kpowers@maine.edu

http://www.mainecite.org

Principal Investigator: David Noble Stockford, 207/624-6650 (V); 207/624-6800 (TTY)

Public Contact: Kathleen Powers, Project Director, 207/621-3195 (V); 207/621-3482 (TTY); Fax:

207/621-3193

Project Number: H224A90047

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $541,876; FY 90 $544,315; FY 91 $594,315; FY 92 $650,000; FY 93

$750,000; FY 94 $845,000; FY 95 $845,000; FY 96 $782,000; FY 97 $586,656; FY 98 $391,104;

FY 99 $391,104; FY 00 $391,104; FY 01 $391,104

Abstract: This project collaborates with various Maine organizations, including centers for independent living, parent training agencies, and nonprofit community programs, to build a statewide network of information and resources on AT. Project goals are: to promote broader understanding of the

benefits and wider availability of AT; to educate people with disabilities, their families, professionals, and general public in purchasing and using AT; to promote self-advocacy among people with

disabilities to shape public policy that promotes assistive technology and universal design; and to

assist public and private institutions, organizations, and associations in providing the knowledge,

skills, and competencies related to AT and universal design to their constituents.
State Technology Assistance Projects 9-47

State Technology Assistance Projects

Maryland

Maryland Technology Assistance Program (MD TAP)

Maryland Governor’s Office for Individuals with Disabilities

2301 Argonne Drive, Room T17

Baltimore, MD 21218

rasinski@clark.net

http://www.mdtap.org

Principal Investigator: Paul Rasinski, Project Director

Public Contact: Patrick McCurdy, 800/832-4827 (800/TECH TAP, V/TTY); 410/554-9230 (V/

TTY); Fax: 410/554-9237

Project Number: H224A90019

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $500,000; FY 90 $502,250; FY 91 $502,250; FY 92 $671,029; FY 93

$770,000; FY 94 $825,000; FY 95 $825,000; FY 96 $763,694; FY 97 $572,771; FY 98 $381,000;

FY 99 $381,847; FY 00 $381,847; FY 01 $381,847

Abstract: The Maryland Technology Assistance Program (MD TAP) is a part of the Governor’s

Office for Individuals with Disabilities serving individuals of all ages and disabilities. Activities of

this program include conducting a public awareness campaign with a toll-free phone number, maintaining lending libraries of information and AT devices, and equipment demonstration centers. The

program administers a loan guarantee project, that makes possible low-interest loans for AT to

individuals with disabilities. The program grants funds to private organizations to provide regional

coverage of the state in relation to AT issues.
9-48 State Technology Assistance Projects

State Technology Assistance Projects

Massachusetts

Massachusetts Assistive Technology Partnership

Children’s Hospital

1295 Boylston Street, Suite 310

Boston, MA 02215

matp@matp.org

http://www.matp.org

Principal Investigator: Marylyn Howe, Project Director, 617/355-7167 (TTY)

Public Contact: Patricia Hill, 800/848-8867 (V/TTY, in state only); 617/355-7153 (V); 617/355-

7301 (TTY); Fax: 617/355-6345

Project Number: H224A00036

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $563,998; FY 91 $593,993; FY 92 $624,062; FY 93 $725,764; FY 94

$811,962; FY 95 $811,962; FY 96 $751,592; FY 97 $789,592; FY 98 $592,194; FY 99 $592,194;

FY 00 $394,796; FY 01 $394,796

Abstract: The Massachusetts Assistive Technology Partnership (MATP) is a consumer-responsive,

cross-disability, multicultural, statewide project that conducts activities to increase access to AT for

people with disabilities. Activities include public awareness, information services, training and

technical assistance, funding and policy analysis, advocacy, and related work to improve services

and promote involvement of people with disabilities in AT. Through regional Peer Assistive Technology Programs, MATP provides information and referral, peer networking, training, and individual

and systems advocacy. The MATP works closely with people with disabilities, family members,

providers, and state agencies to identify needs and pursue change in the AT service-delivery system.

The project publishes an AT newsletter, pursues remedies of funding and policy barriers, provides

training on a range of AT available and resources for obtaining assistive technology, pursues improvement of equipment standards, promotes increased availability of services, promotes increased

involvement of people with disabilities in AT services and policy making, and coordinates with

related projects in Massachusetts, regionally, and nationally.
State Technology Assistance Projects 9-49

State Technology Assistance Projects

Michigan

Michigan AT Project

Michigan Disability Rights Coalition

740 West Lake Lansing Road, Suite 400

East Lansing, MI 48823

http://www.copower.org/At/index.htm

Principal Investigator: Sheryl Avery-Meints, Project Director, 517/373-3390

Public Contact: Kathryn Wyeth, 800/760-4600 (V/TTY, in state only); 517/333-2477 (V/TTY);

Fax: 517/333-2677

Project Number: H224A50009

Start Date: September 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $550,000; FY 93 $885,881 (includes carryover funding); FY 94 $610,000;

FY 95 $850,000; FY 96 $786,837; FY 97 $824,837; FY 98 $1,033,953; FY 99 $1,012,525; FY 00

$759,394; FY 01 $506,263

Abstract: Michigan’s AT Project focuses on building the capacity of community-based, local organizations to advocate for the use of AT as a tool for inclusion in all aspects of life. Currently,

Michigan’s AT Project has projects around the state that are creating genuine systems change on a

local basis. The AT Project also supports a Web-based system of AT resources and communication

networks.
9-50 State Technology Assistance Projects

State Technology Assistance Projects

Minnesota

Minnesota System of Technology to Achieve Results (STAR) Program

State of Minnesota Department of Administration

Governor’s Advisory Council on Technology for People with Disabilities

360 Centennial Building

658 Cedar Street

St. Paul, MN 55155

star.program@state.mn.us

http://www.admin.state.mn.us/assistivetechnology

Principal Investigator: Mary Brogdon

Public Contact: 800/657-3862 (V, in state only); 800/657-3895 (TTY, in state only); 651/296-2771

(V); 651/296-8478 (TTY); Fax: 651/282-6671

Project Number: H224A90041

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $500,000; FY 90 $502,250; FY 91 $567,250; FY 92 $700,000; FY 93

$750,000; FY 94 $820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $694,268; FY 98 $569,300;

FY 99 $379,500; FY 00 $379,500; FY 01 $379,533

Abstract: This project: (1) provides a toll-free information service for residents of Minnesota; (2)

distributes brochures and other literature; (3) hosts workshops and forums; (4) provides opportunities

for consumer involvement; and (5) assists individuals seeking funding. STAR advocates for policy,

practice, and legislative change regarding access to AT; contracts for mobile outreach projects and

legal advocacy services; and provides grants on a regional basis.
State Technology Assistance Projects 9-51

State Technology Assistance Projects

Mississippi

Mississippi Project START (Success Through Assistive/Rehabilitative

Technology)

Mississippi Department of Rehabilitation Services

P.O. Box 1698

Jackson, MS 39215-1000

spower@mdrs.state.ms.us

Principal Investigator: Stephen Power, Project Director

Public Contact: Eugenie Bradshaw, 800/852-8328 (V/TTY, in state only); 601/987-4872 (V/TTY);

Fax: 601/364-2349

Project Number: H224A00032

Start Date: May 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $521,285; FY 91 $530,000; FY 92 $554,000; FY 93 $594,714; FY 94

$619,430; FY 95 $619,430; FY 96 $573,400; FY 97 $611,400; FY 98 $458,550; FY 99 $305,700;

FY 00 $305,700; FY 01 $305,700

Abstract: Project START is a multifaceted, collaborative effort. The primary components include:

(1) an advisory council that allows for consumer input and the involvement of other relevant agencies, organizations, and groups; (2) an information clearinghouse that provides people with disabilities, their families, service providers, and other interested parties with information regarding available AT devices and services; (3) a training program that ensures that service provider personnel,

people with disabilities, and other relevant parties are familiar with the utility and potential of AT

devices; (4) a model service-delivery system that acts as a referral source and concurrent technical

resource to existing AT providers, and provides AT services to people with disabilities ineligible for

existing programs; and (5) an equipment loan program that makes assistive devices available to

people with disabilities for trial periods, for use while their personal equipment is being repaired or

replaced, and to service providers for training and demonstration purposes.
9-52 State Technology Assistance Projects

State Technology Assistance Projects

Missouri

Missouri Assistive Technology Project

Missouri Department of Labor and Industrial Relations

Governor’s Council on Disability

4731 South Cochise, Suite 114

Independence, MO 64055-6975

matpmo@swbell.net

http://www.dolir.state.mo.us/matp

Principal Investigator: Diane Golden, PhD, Project Director

Public Contact: 800/647-8557 (V, in state only); 800/647-8558 (TTY, in state only); 816/373-5193

(V); 816/373-9315 (TTY); Fax: 816/373-9314

Project Number: H224A30015

Start Date: September 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $524,488; FY 92 $526,988; FY 93 $550,801; FY 94 $667,121; FY 95

$675,000; FY 96 $689,639; FY 97 $727,639; FY 98 $878,221; FY 99 $658,666; FY 00 $439,111;

FY 01 $439,111

Abstract: The primary components of this project include: (1) a statewide advisory council established to provide input from consumers and relevant state agencies; (2) legislative and policy initiatives including an equipment loan program, an equipment distribution program that provides both

adaptive telephone equipment and adaptive computer equipment, a no-interest or low-interest loan

program to purchase AT, a funding program to provide AT to children to age 21, health care coverage

for mandatory infant hearing screenings and initial amplification devices, Medicaid coverage of

augmentative communication devices for adults, an AT lemon law, sales tax exemptions on AT,

managed care reform, and accessible state IT; (3) an information and referral service; (4) individual

advocacy services; and (5) a statewide AT conference.
State Technology Assistance Projects 9-53

State Technology Assistance Projects

Montana

MonTECH

University of Montana

Rural Institute on Disabilities

634 Eddy Avenue

Missoula, MT 59812

montech@selway.umt.edu

http://ruralinstitute.umt.edu/HDC/montech.htm

Principal Investigator: Gail McGregor, Project Director

Public Contact: 800/732-0323 (V/TTY); 406/243-5676 (V/TTY); Fax: 406/243-4730

Project Number: H224A10002

Start Date: September 30, 1991

NIDRR Officer: Judith Fein

NIDRR Funding: FY 91 $550,553; FY 92 $550,553; FY 93 $590,553; FY 94 $675,258; FY 95

$673,058; FY 96 $624,080; FY 97 $663,080; FY 98 $752,408; FY 99 $564,306; FY 00 $376,204;

FY 01 $376,204

Abstract: This project develops a comprehensive statewide system of technology-related assistance

to ensure that all Montanans with disabilities have equitable access to the AT devices and services

they need. Emphasis is on eliminating barriers to obtaining AT, enacting policy change, improving

awareness, strengthening consumer and provider networks, and increasing access to funding. The

Montana Consortium for Assistive Technology (MCAT) serves as the program advisory board and

offers opportunities for consumer participation. Activities currently underway include: (1) a comprehensive equipment demonstration and evaluation center offering hands-on experience with devices

to both consumers and service providers; (2) an AT loan/lease clearinghouse; (3) an information and

assistance service that includes maintenance of a comprehensive database of Montana service programs; (4) focused outreach activities with the state’s largest minority group, Native Americans; and

(5) an Internet Web site. Other activities include a low-interest financial loan program for consumers

who do not qualify for other funding sources, and specialized training programs to increase the skills

of professionals providing AT services.
9-54 State Technology Assistance Projects

State Technology Assistance Projects

Nebraska

Nebraska Assistive Technology Partnership

Nebraska Department of Education

Vocational Rehabilitation

5143 South 48th Street, Suite C

Lincoln, NE 68516-2204

atp@atp.state.ne.us

http://www.nde.state.ne.us/ATP/

Principal Investigator: Mark Schultz, Project Director

Public Contact: Kathryn Kruse, 888/806-6287 (V/TTY, in state only); 402/471-0734 (V/TTY); 402/

471-0735 (V/TTY); Fax: 402/471-6052

Project Number: H224A90040

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $523,000; FY 90 $525,352; FY 91 $570,352; FY 92 $730,000; FY 93

$766,984; FY 94 $820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $569,300; FY 98 $379,533;

FY 99 $379,533; FY 00 $379,533; FY 01 $379,533

Abstract: The Partnership provides statewide AT and home modification services for Nebraskans of

all ages and disabilities. The Partnership is a collaboration of private, nonprofit, and governmental

organizations and agencies working together to create a seamless, comprehensive, statewide AT

program. Collaborators include Nebraska’s departments of Education, Health and Human Services,

Developmental Disabilities, Economic Development, and Vocational Rehabilitation. The collaboration has resulted in funding for services to help meet the diverse needs of consumers regarding

education, employment, housing, and independent living. These services include assessment, evaluation, fabrication, repair, maintenance, and training. Cost savings have also resulted due to equipment

recycling, identification of appropriate equipment, and cost sharing between partnering agencies. In

addition, the Partnership helps to support Demonstration Centers, utilizes a Peer Support Network,

and sponsors special events, including Technology Expos. Training materials have been developed

for educators (3 hour instructional unit and special education technical manual), health care professionals, and insurance reviewers.
State Technology Assistance Projects 9-55

State Technology Assistance Projects

Nevada

Nevada Assistive Technology Collaborative

Nevada Rehabilitation Division

Community-Based Services

711 South Stewart Street

Carson City, NV 89710

pgowins@govmail.state.nv.us

http://detr.state.nv.us/rehab/reh_pgbs.htm

Principal Investigator: Donny Loux

Public Contact: Paul Haugen, 888/337-3839 (V, in state only); 775/687-4452 (V); 775/687-3388

(TTY); Fax: 775/687-3292

Project Number: H224A00037

Start Date: July 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $560,884; FY 91 $580,047; FY 92 $594,368; FY 93 $624,588; FY 94

$675,046; FY 95 $675,046; FY 96 $624,883; FY 97 $662,883; FY 98 $497,162; FY 99 $331,442;

FY 00 $331,442; FY 01 $331,442

Abstract: The Nevada Project is accomplishing 15 major goals in systems change that have been

established in response to identified needs in consultation with the state’s consumer-directed executive board. Additionally, the project trains 400 consumers in the use of technology; a minimum of

1,800 consumers in self-advocacy skills; 550 families in applying technology to the needs of a

family member with a disability; and a minimum of 5,730 cross-disciplinary university undergraduates in the fields of medicine, health, education, rehabilitation, gerontology, engineering, speech

pathology and audiology, and counseling in AT and cultural awareness. The project provides information and referral and other awareness services to a minimum of 10,000 consumers over the life of

the project and evaluates the impact of those services through follow-up and satisfaction surveys.
9-56 State Technology Assistance Projects

State Technology Assistance Projects

New Hampshire

New Hampshire Technology Partnership Project

University of New Hampshire Technology Partnership

Institute on Disability/UAP

The Concord Center

#14 Ten Ferry Street

Concord, NH 03301-5019

mcschuh@cisunix.unh.edu

http://iod.unh.edu/projects/assist.htm#nhatpp

Principal Investigator: Jan Nisbet, PhD; Sonke Nisbet, PhD, 603/862-4320 (V/TTY)

Public Contact: 800/427-3338 (V/TTY, in state only); 603/224-0630 (V/TTY); Fax: 603/226-0389

Project Number: H224A10015

Start Date: September 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $506,307; FY 92 $505,008; FY 93 $550,008; FY 94 $635,000; FY 95

$635,000; FY 96 $587,813; FY 97 $625,813; FY 98 $717,815; FY 99 $538,361; FY 00 $358,908;

FY 01 $358,908

Abstract: This project provides extensive training and network development focused on: (1) early

intervention, (2) inclusive education, (3) supported living and employment, and (4) using alternative

and augmentative communication to develop free expression and citizenship. Recycled equipment,

demonstration and training, and information and referral are also available. The project’s lead agency

is the Institute on Disability, a University Affiliated Program at the University of New Hampshire.

Additional subcontracts have been awarded to Granite State Independent Living, Disabilities Rights

Center, and New Hampshire Alliance for Assistive Technology.
State Technology Assistance Projects 9-57

State Technology Assistance Projects

New Jersey

New Jersey Technology Assistive Resource Program (TARP)

New Jersey Protection and Advocacy, Inc.

210 South Broad Street, Third Floor

Trenton, NJ 08608

gblue@njpanda.org

http://www.njpanda.org/tarp

Principal Investigator: Ellen Lence, Project Director

Public Contact: 800/342-5832 (V, in state only); 609/633-7106 (TTY); 609/292-9742 (NJ P&A

Intake Unit); Fax: 609/341-3327

Project Number: H224A20007

Start Date: September 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $548,050; FY 93 $670,528 (includes carryover funding); FY 94 $548,050;

FY 95 $550,000; FY 96 $509,130; FY 97 $547,130; FY 98 $710,380; FY 99 $688,800; FY 00

$516,714; FY 01 $344,476

Abstract: TARP is a consumer-driven program whose mission is to increase awareness of and

improve access to AT for all people with disabilities in the state. The project provides information

and referral through its 800 telephone number and Web site regarding all aspects of AT. TARP also

provides advocacy services, both legal and nonlegal, addressing both individual and systems issues.

In addition, project staff members provide training and technical assistance, as well as outreach

regarding the benefits of and funding for AT devices and services. TARP disseminates brochures,

funding guides, and informational bulletins.
9-58 State Technology Assistance Projects

State Technology Assistance Projects

New Mexico

New Mexico Technology Assistance Program (NMTAP)

New Mexico State Department of Education

Division of Vocational Rehabilitation

435 Saint Michaels Drive, Building D

Santa Fe, NM 87505

aklaus@state.nm.us

http://www.nmtap.com

Principal Investigator: Alan Klaus, Project Director

Public Contact: Caroll Cadena, 800/866-2253 (V/TTY); 800/659-4915 (TTY); 505/954-8533 (V/

TTY); Fax: 505/954-8562

Project Number: H224A00017

Start Date: April 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $500,500; FY 91 $515,500; FY 92 $525,000; FY 93 $660,710; FY 94

$750,000; FY 95 $750,000; FY 96 $694,000; FY 97 $732,268; FY 98 $549,201; FY 99 $366,134;

FY 00 $366,134; FY 01 $366,134

Abstract: NMTAP examines and works to eliminate barriers to obtaining assistive technology in

New Mexico. The project has established a statewide program for coordinating AT services; the

program is designed to assist people with disabilities to locate, secure, and maintain AT that can

increase, maintain, or improve functional capabilities of people with disabilities. This program is a

resource both for people requiring assistive technology and those that manufacture and provide AT

devices or services. The program focuses on permanently eliminating barriers in three major areas:

access to, availability of, and funding for AT.
State Technology Assistance Projects 9-59

State Technology Assistance Projects

New York

New York State Technology-Related Assistance of Individuals with

Disabilities (TRAID) Project

New York State Office of Advocate for Persons with Disabilities

One Empire State Plaza, Suite 1001

Albany, NY 12223-1150

traid@emi.com

http://www.advoc4disabled.state.ny.us/TRAID_Project/technlog.htm

Principal Investigator: Lisa Rosano-Kazckowski, Acting Project Manager

Public Contact: 800/522-4369 (V/TTY/Spanish, in state only); 518/474-2825 (V); 518/473-4231

(TTY); Fax: 518/473-6005

Project Number: H224A00041

Start Date: October 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $500,000; FY 91 $600,000; FY 92 $615,000; FY 93 $820,961; FY 94

$950,000; FY 95 $950,000; FY 96 $879,406; FY 97 $917,406; FY 98 $688,054; FY 99 $458,703;

FY 00 $458,703; FY 01 $458,703

Abstract: The Technology-Related Assistance of Individuals with Disabilities (TRAID) Project has

been established to improve access to AT through consumer-responsive interventions to effect

systemic change on a policy, regulatory, and legislative level. Project staff members chair and facilitate the workings of the NYS Interagency Partnership on Assistive Technology, a group designed to

collaborate with a consumer-majority advisory board to identify systemic barriers to AT devices and

services and collaborate on strategies to address the barriers. In collaboration with the NYS Department of Health, Early Intervention Program, and Verizon, the local telecommunications corporation,

the TRAID Project administers 12 Regional TRAID Centers that operate device demonstration and

loan services, coordinate local information and referral, and support individualized self-advocacy.

The TRAID Project also provides information and referral regarding assistive technology, provides

training and public awareness, and administers the TRAID-IN Equipment Exchange service.
9-60 State Technology Assistance Projects

State Technology Assistance Projects

North Carolina

North Carolina Assistive Technology Project

North Carolina Department of Health and Human Services

Division of Vocational Rehabilitation Services

1110 Navaho Drive, Suite 101

Raleigh, NC 27609-7322

ncatp@mindspring.com

http://www.mindspring.com/~ncatp

Principal Investigator: Ricki Cook, Project Director

Public Contact: 919/850-2787 (V/TTY); Fax: 919/850-2792

Project Number: H224A00010

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $566,425; FY 91 $595,441; FY 92 $625,843; FY 93 $730,152; FY 94

$820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $797,066; FY 98 $597,800; FY 99 $398,533;

FY 00 $398,533; FY 01 $398,533

Abstract: This project provides information and referral services, technical assistance, and training

seminars and materials. It supports four regional demonstration centers that provide demonstration

and trial of devices. The project’s central office in Raleigh coordinates systems change and advocacy, policy, and funding issues statewide. The North Carolina Division of Vocational Rehabilitation

Services provides the project with internal management systems, agency resources, and fiscal management.
State Technology Assistance Projects 9-61

State Technology Assistance Projects

North Dakota

North Dakota Interagency Program for Assistive Technology (IPAT)

North Dakota Department of Human Services

Office of Vocational Rehabilitation

P.O. Box 743

Cavalier, ND 58220

jlee@polarcom.com

http://www.ndipat.org

Principal Investigator: Judith A. Lee, Project Director

Public Contact: 800/265-4728 (V/TTY); 701/265-4807 (V/TTY); Fax: 701/265-3150

Project Number: H224A30003

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 93 $500,000; FY 94 $540,000; FY 95 $540,000; FY 96 $509,130; FY 97

$547,130; FY 98 $633,103; FY 99 $611,000; FY 00 $611,000; FY 01 $458,756

Abstract: The Interagency Program for Assistive Technology is dedicated to supporting the AT

needs of all people with disabilities in North Dakota, including those individuals experiencing the

effects of aging. The vision of this project is increased access to AT devices and services for the

citizens of North Dakota. This goal is realized through: (1) interagency coordination that develops

and promotes policies that improve access to AT devices and services for individuals with disabilities of all ages; (2) a public awareness program designed to provide information to targeted individuals relating to the availability and benefits of AT devices and services; (3) technical assistance and

training that provides support to public and private entities to increase consumer access to appropriate assessments, training, equipment, and funding for AT; and (4) outreach activities to all regions of

this rural and sparsely populated state, including a focus on Native Americans and older individuals

living below the poverty level, the two population groups identified as underrepresented in North

Dakota.
9-62 State Technology Assistance Projects

State Technology Assistance Projects

Northern Mariana Islands

Commonwealth of the Northern Mariana Islands (CNMI) Assistive

Technology Project: System of Technology-Related Assistance for

Individuals with Disabilities (STRAID)

CNMI Governor’s Council on Developmental Disabilities

Capitol Hill

P.O. Box 502565

Saipan, MP 96950-2565

clamkin@cnmiddcouncil.org; straid@cnmiddcouncil.org

http://www.cnmiddcouncil.org/atstraid/atflash.htm

Principal Investigator: Thomas J. Camacho, Project Director

Public Contact: Celia B. Lamkin, MD, Project Coordinator, 670/664-7000 (V); Fax: 670/664-7010

Project Number: H224A40007

Start Date: October 1, 1994

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 94 $150,000; FY 95 $150,000; FY 96 $150,000; FY 97 $150,000; FY 98

$150,000; FY 99 $105,000; FY 00 $105,000; FY 01 $105,000

Abstract: This project provides technology-related assistance for people with disabilities in the

Commonwealth of the Northern Mariana Islands. The project focuses on the development of a

locally based system for the technology-related needs of children, youth, and adults with disabilities.

The primary objective of this project is to enhance opportunities for people with disabilities in the

Commonwealth to become independent, productive, integrated, and fully included in the community.

Through increased emphasis on coordination with agencies or organizations that provide or pay for

the provision of AT devices or services, the CNMI Governor’s Council on Developmental Disabilities is building and activating a system that responds to people with disabilities’ needs to: (1) have

greater control over their lives; (2) participate in, and contribute more fully to, activities in their

home, school, work environment, and community; (3) interact to a greater extent with individuals

who do not have disabilities; and (4) benefit from opportunities that are taken for granted by individuals who do not have disabilities.
State Technology Assistance Projects 9-63

State Technology Assistance Projects

Ohio

Assistive Technology of Ohio (AT OHIO)

Ohio State University Research Foundation

J.L. Camera Center

2050 Kenny Road, 9th Floor

Columbus, OH 43221

atohio@osu.edu

http://www.atohio.org

Principal Investigator: Sheldon R. Simon, MD

Public Contact: Douglas Huntt, Executive Director, 800/784-3425 (V/TTY, in state only); 614/292-

2426 (V/TTY); 614/292-3162 (TTY); Fax: 614/292-5866

Project Number: H224A40001

Start Date: August 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $522,100; FY 93 $522,000; FY 94 $770,113; FY 95 $600,000; FY 96

$555,414; FY 97 $593,414; FY 98 $815,688; FY 99 $794,260; FY 00 $595,695; FY 01 $397,130

Abstract: This project represents consumers of AT in Ohio. It assists in the development and implementation of strategies to overcome barriers regarding access to, provision of, and funding for,

assistive technology services and devices, with priority for identification of barriers to funding

through state education (including special education), VR services, medical assistance services, and,

as appropriate, other health and human services, with particular emphasis on overcoming barriers for

underrepresented and rural populations.
9-64 State Technology Assistance Projects

State Technology Assistance Projects

Oklahoma

Oklahoma ABLE Tech

Oklahoma State University

University Wellness Center

1514 West Hall of Fame Road

Stillwater, OK 74078-2026

mljwell@okstate.edu

http://okabletech.okstate.edu

Principal Investigator: Mac McCrory, Project Director

Public Contact: Linda Jaco, Project Manager, 800/257-1705 (V/TTY); 405/744-9864 (V); Fax: 405/

744-2487

Project Number: H224A50007

Start Date: July 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $530,000; FY 93 $668,524 (includes carryover funding); FY 94 $530,000;

FY 95 $575,000; FY 96 $532,272; FY 97 $570,272; FY 98 $695,237; FY 99 $673,809; FY 00

$505,357; FY 01 $336,905

Other funding: FY 00 $33,000 (Southwest Center for Agricultural Health, Injury Prevention and

Education-NIOSH); FY 01 $100,000 (Oklahoma Department of Rehabilitation Services)

Abstract: The mission of ABLE Tech is to facilitate systems change to enhance the provision of,

access to, and funding for AT so that individuals with disabilities can achieve their greatest potential.

ABLE Tech conducts statewide project activities, including public awareness, training and technical

assistance, funding and policy development, individual and systems advocacy, and project coordination. The project also provides regional information and referral, and legal advocacy.
State Technology Assistance Projects 9-65

State Technology Assistance Projects

Oregon

Oregon Technology Access for Life Needs (TALN)

Oregon Disabilities Commission

c/o Access Technologies, Inc.

3070 Lancaster Drive Northeast

Salem, OR 97305-1396

ati@orednet.org

http://www.taln.org

Principal Investigator: Doug Cameron, Project Director

Public Contact: 800/677-7512 (V/TTY, in state only); 503/361-1201 (V/TTY); Fax: 503/370-4530

Project Number: H224A50002

Start Date: April 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $540,000; FY 91 $555,000; FY 92 $575,000; FY 93 $620,000; FY 94

$670,000; FY 95 $670,000; FY 96 $620,212; FY 97 $658,212; FY 98 $493,659; FY 99 $329,106;

FY 00 $329,106; FY 01 $329,106

Abstract: This project uses existing resources including community colleges, medical, rehabilitation, educational, and recreational and adaptive sports programs, the state library system, federally

funded technology projects currently in existence in Oregon, and state agencies to expand the availability of AT in Oregon. Projects include an exhibit to increase public awareness, a toll-free number

for information and referral, training programs, equipment loan banks and demonstration labs, and a

database on used equipment.
9-66 State Technology Assistance Projects

State Technology Assistance Projects

Pennsylvania

Pennsylvania’s Initiative on Assistive Technology (PIAT)

Temple University

Institute on Disabilities/UAP

1301 Cecil B. Moore Avenue, 423 Ritter Annex

Philadelphia, PA 19122

piat@astro.ocis.temple.edu

http://www.temple.edu/inst_disabilities/PIAT

Principal Investigator: Diane Bryen, PhD; Amy S. Goldman

Public Contact: Amy S. Goldman, 800/204-7428 (V); 800/750-7428 (TTY); 215/204-5966 (V);

215/204-1356 (V/TTY); Fax: 215/204-9371

Project Number: H224A20006

Start Date: September 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $550,000; FY 93 $602,623; FY 94 $730,000; FY 95 $850,000; FY 96

$786,837; FY 97 $824,837; FY 98 $1,049,575; FY 99 $1,028,147; FY 00 $771,110; FY 01 $514,074

Abstract: This project focuses on the creation of a consumer responsive system, supported by

combined public and private resources, through which Pennsylvanians with disabilities (including

older Pennsylvanians) have access to the AT services and supports they need to contribute to and

participate fully in their communities. Major functional areas include public awareness, information

and referral, individual advocacy and systems change, and training. PIAT has established a network

of regional Assistive Technology Resource Centers (ATRCs). ATRCs are also a key to

Pennsylvania’s Assistive Technology Lending Library, a state funded program based on the pilot

short-term equipment loan program developed by PIAT.
State Technology Assistance Projects 9-67

State Technology Assistance Projects

Puerto Rico

Puerto Rico Assistive Technology Project

FILIUS Institute

University of Puerto Rico

Box 365067

San Juan, PR 00936-5067

pratp@pratp.org

http://www.pratp.org

Principal Investigator: Maria I. Miranda

Public Contact: 800/496-6035 (V/TTY, from the U.S.); 800/981-6033 (V/TTY, from Puerto Rico);

787/767-6035 (V); 787/767-8642 (TTY); Fax: 787/754-8034

Project Number: H224A70001

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $500,000; FY 94 $545,000; FY 95 $555,000; FY 96 $513,758; FY 97

$551,758; FY 98 $692,202; FY 99 $670,774; FY 00 $670,774; FY 01 $503,081

Abstract: This project establishes a comprehensive, island-wide system of AT services to maximize

and enhance existing resources in Puerto Rico. This system is timely and consumer-responsive to the

needs of people with disabilities. The project’s main focus is to influence the system through collaborative efforts with public and private agencies to guarantee equal opportunity and access to AT

by people with disabilities in Puerto Rico. The Assistive Technology Program is administered by the

University of Puerto Rico, Office of the President, FILIUS Institute, Assistive Technology Institute.
9-68 State Technology Assistance Projects

State Technology Assistance Projects

Rhode Island

Rhode Island Assistive Technology Access Partnership (ATAP)

Rhode Island Department of Human Services

Office of Rehabilitation Services

40 Fountain Street

Providence, RI 02903-1898

reginac@ors.state.ri.us

http://www.atap.state.ri.us

Principal Investigator: Raymond A. Carroll, Administrator

Public Contact: Regina Connor, Project Director, 800/752-8088 (in state only); 401/421-7005, ext.

390 (V); 401/421-7016 (TTY); Fax: 401/222-3574

Project Number: H224A30012

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 93 $500,000; FY 94 $500,000; FY 95 $500,000; FY 96 $500,000; FY 97

$538,000; FY 98 $624,467; FY 99 $603,039; FY 00 $603,039; FY 01 $452,279

Abstract: The Rhode Island Assistive Technology Access Partnership (ATAP) is a statewide partnership of organizations, each with a targeted focus, working together with a consumer council (Rhode

Island Council on Assistive Technology) to remove barriers and increase access to AT for individuals

with disabilities of all ages.
State Technology Assistance Projects 9-69

State Technology Assistance Projects

South Carolina

South Carolina Assistive Technology Program (SCATP)

University of South Carolina School of Medicine

Center for Disability Resources

Columbia, SC 29208

jjendron@usit.net; evelyne@cdd.sc.edu

http://www.public.usit.net/jjendron

Principal Investigator: Richard Ferrante, 803/935-5231 (V)

Public Contact: Evelyn Evans, Project Director, 803/935-5263 (V/TTY); Fax: 803/935-5342

Project Number: H224A60001

Start Date: October 1, 1991

NIDRR Officer: Judith Fein

NIDRR Funding: FY 91 $541,767; FY 92 $541,767; FY 93 $595,767; FY 94 $720,000; FY 95

$720,000; FY 96 $667,000; FY 97 $704,497; FY 98 $829,535; FY 99 $622,151; FY 00 $414,768;

FY 01 $414,768

Abstract: This project is the catalyst for uniting AT services statewide into an easily accessible

system that is responsive to the needs of all South Carolinians with disabilities. SCATP collaborates

with state agencies, policy-makers, and private entities to overcome barriers that prevent people from

getting the devices and services they need for full and productive lives. Systems change activities are

developed with three audiences under consideration: state agency administrators, service providers,

and consumers. Rather than direct provision of services, SCATP focuses on strengthening systems so

that they are mutually reinforcing and self-sustaining; the major funding streams of the Vocational

Rehabilitation Department, Medicaid, the Department of Education, and private insurance are targeted. Systems change activities are connected to training and technical assistance activities that are

supportive of systems change. All activities are guided by input from and responsiveness to consumers and their families.
9-70 State Technology Assistance Projects

State Technology Assistance Projects

South Dakota

South Dakota Assistive Technology Project (DakotaLink)

DakotaLink

221 South Central

Pierre, SD 57501

dvogel@tie.net

http://dakotalink.tie.net

Principal Investigator: Grady Kickul, 605/773-3195 (V)

Public Contact: Dave Vogel, 800/224-5336 (V/TTY, in state only); 605/224-5336 (V/TTY); Fax:

605/224-8320

Project Number: H224A20019

Start Date: July 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $520,000; FY 93 $520,000; FY 94 $620,000; FY 95 $650,000; FY 96

$601,699; FY 97 $601,699; FY 98 $728,100; FY 99 $700,000; FY 00 $525,000; FY 01 $353,336

Abstract: To achieve systems change, DakotaLink works with consumers, state and private agencies, and organizations providing services to, or advocating for, people with disabilities to identify

and eliminate barriers to individuals receiving AT devices or services in a timely manner. The project

uses demonstration centers, outreach coordinators, rehabilitation technicians, and training programs

as a catalyst to: (1) reach the most underserved areas; (2) provide advocacy training for people with

disabilities and their representatives; and (3) provide information support to all individuals regarding

access to, provision of, and funding for assistive technology devices and services. DakotaLink

continues to use a Native American Outreach Coordinator to reach specifically that underserved

population.
State Technology Assistance Projects 9-71

State Technology Assistance Projects

Tennessee

Tennessee Technology Access Project (TTAP)

TTAP

Tennessee Department of Human Services

Department of Rehabilitation Services

Citizen’s Plaza, 11th Floor

400 Deadrick Street

Nashville, TN 37248

kwright@mail.state.tn.us

http://www.state.tn.us/mental/ttap.html

Principal Investigator: Kevin R. Wright, Project Director

Public Contact: 800/732-5059; 615/532-3122 (V/TTY); Fax: 615/532-4685

Project Number: H224A010002

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $550,000; FY 91 $553,675; FY 92 $553,675; FY 93 $640,800; FY 94

$665,000; FY 95 $665,000; FY 96 $615,584; FY 97 $653,584; FY 01 $326,792

Abstract: The Tennessee project emphasizes the implementation and pursuit of systems change and

advocacy activities by developing an information/communication network, working with state

agency policy values, and developing alternate funding mechanisms. The administrative/organizational structure involves consumers, and facilitates interagency cooperation and interaction with the

private sector.
9-72 State Technology Assistance Projects

State Technology Assistance Projects

Texas

Texas Technology Access Project

University of Texas at Austin

Texas Center for Disability Studies

SZB 252 - D5100

Austin, TX 78712-1290

s.elrod@mail.utexas.edu

http://tatp.edb.utexas.edu

Principal Investigator: Susanne Elrod, Project Director

Public Contact: John Moore, 800/828-7839 (V/TTY, in state only); 512/471-7621 (V); 512/471-

1844 (TTY); Fax: 512/471-7549

Project Number: H224A20012

Start Date: August 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $550,000; FY 93 $550,000; FY 94 $550,000; FY 95 $850,000; FY 96

$786,837; FY 97 $824,837; FY 98 $1,167,518; FY 99 $1,146,080; FY 00 $859,566; FY 01 $573,044

Abstract: This project promotes increased access to assistive and telecommunication technology

through technical assistance and training, information and public awareness activities, and coordination with public agencies and policy makers.
State Technology Assistance Projects 9-73

State Technology Assistance Projects

U.S. Virgin Islands

U.S. Virgin Islands Technology-Related Assistance for Individuals with

Disabilities (TRAID)

University of the Virgin Islands/UAP

#2 John Brewer Bay

St. Thomas, USVI 00801-0990

yhabtey@uvi.edu

http://www.uvi.edu/pub-relations/viuapindx.html

Principal Investigator: Yegin Habtes

Public Contact: 340/693-1323; Fax: 340/693-1325

Project Number: H224A50005

Start Date: October 1, 1995

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 95 $150,000; FY 96 $150,000; FY 97 $150,000; FY 98 $150,000; FY 99

$105,000; FY 00 $105,000; FY 01 $105,000

Other funding: FY 95 $6,400

Abstract: The Virgin Islands project disseminates necessary information on assistive technologies

for people with disabilities and provides a venue for device demonstration through the establishment

of two resource centers, on the islands of St. Thomas and St. Croix. The project is also initiating an

AT loan library.
9-74 State Technology Assistance Projects

State Technology Assistance Projects

Utah

Utah Assistive Technology Program (UATP)

Utah State University

Center for Persons with Disabilities

6855 Old Main Hill

Logan, UT 84322-6855

judith@cpd2.usu.edu

http://www.uatpat.org

Principal Investigator: Judith Holt, Program Director, 435/797-7157

Public Contact: 435/797-3824 (V); 435/797-1981 (TTY); Fax: 435/797-2355

Project Number: H224A90051

Start Date: November 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $505,445; FY 90 $507,720; FY 91 $559,720; FY 92 $696,224; FY 93

$788,526; FY 94 $800,000; FY 95 $800,000; FY 96 $740,560; FY 97 $555,414; FY 98 $370,276;

FY 99 $370,276; FY 00 $370,276; FY 01 $370,276

Abstract: The Utah Assistive Technology Program (UATP) provides expertise, resources, and a

structure to enhance and expand AT services provided by private and public agencies in Utah. This

occurs through monitoring, coordination, information dissemination, empowering individuals, the

identification and removal of barriers, and expanding state resources. Primary components of UATP

include: (1) the Utah Center for Assistive Technology, a statewide service hub; (2) Assistive Technology Access Centers located in rural centers for independent living; (3) outreach to those over the

age of 65 and their service providers; (4) the Utah Assistive Technology Foundation providing lowinterest loans to consumers; (5) the Consumer Council whose primary interest is to identify barriers;

(6) the Management and Implementation Board, made up of state service agency representatives

(usually the directors) that take appropriate action to remove barriers; and (7) consumer technical

services provided by the Assistive Technology Development and Fabrication Laboratory at Utah

State University.
State Technology Assistance Projects 9-75

State Technology Assistance Projects

Vermont

Vermont Assistive Technology Project

Vermont Department of Aging and Disabilities

103 South Main Street, Weeks Building

Waterbury, VT 05671-2305

http://www.dad.state.vt.us/atp

Principal Investigator: Julie Tucker, Project Director

Public Contact: 800/750-6355 (V/TTY, in state only); 802/241-2620 (V/TTY); Fax: 802/241-2174

Project Number: H224A00023

Start Date: July 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $553,048; FY 91 $560,577; FY 92 $581,417; FY 93 $705,000; FY 94

$700,000; FY 95 $700,000; FY 96 $647,983; FY 97 $685,983; FY 98 $514,487; FY 99 $342,991;

FY 00 $342,992; FY 01 $342,992

Abstract: The Vermont Assistive Technology Project encompasses a state coordinating council for

AT issues; regional centers for demonstration, trial, and technical support with computer and augmentative communication equipment; and regional seating and positioning centers. The project

affects change in policies and procedures of public and private agencies, and maintains a used

equipment recycling program. It supports an annual computer training institute for educators and an

annual recreation equipment expo. The project continues to expand Web access to AT information

and resources, and to integrate AT knowledge and expertise into existing public and private agencies.

The Project also supports a two-year program in Rehabilitation Engineering Technology at Vermont

Technical College.
9-76 State Technology Assistance Projects

State Technology Assistance Projects

Virginia

Virginia Assistive Technology System (VATS)

Virginia Department of Rehabilitative Services (DRS)

8004 Franklin Farms Drive

P.O. Box K-300

Richmond, VA 23288-0300

knorrkh@drs.state.va.us

http://www.vats.org

Principal Investigator: Kenneth Knorr, Project Director

Public Contact: 800/552-5019 (V/TTY); 804/662-9990 (V/TTY); Fax: 804/662-9478

Project Number: H224A00009

Start Date: June 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $550,000; FY 91 $562,500; FY 92 $578,883; FY 93 $685,331; FY 94

$663,467; FY 95 $745,000; FY 96 $689,639; FY 97 $727,639; FY 98 $545,729; FY 99 $363,820;

FY 00 $363,820; FY 01 $363,820

Abstract: The Virginia Assistive Technology System (VATS) provides coordination at three levels:

state policy, through the mechanism of interagency agreements; project management, through the

mechanism of the advisory council; and at the local and regional level, through four AT regional

sites. Activities include information and referral services, technical assistance, training materials and

seminars, and creative grant programs and policy development. The project has produced a textbook,

Assistive Technology: A Resource for School, Work, and Community (Brookes Publishing) and a

National Study of Loan Financing Programs.
State Technology Assistance Projects 9-77

State Technology Assistance Projects

Washington

Washington Assistive Technology Alliance (WATA)

University of Washington

Center for Technology and Disability Studies (CTDS)

Box 357920

Seattle, WA 98195-7920

uwat@u.washington.edu

http://wata.org

Principal Investigator: Debbie Cook, Project Director, 360/438-8008 (V); 360/438-8644 (TTY)

Public Contact: 800/841-8345 (V/TTY, in state only); 206/685-4181 (V); 206/616-1396 (TTY);

Fax: 206/543-4779

Project Number: H224A30006

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $525,090; FY 94 $580,000; FY 95 $600,000; FY 96 $555,414; FY 97

$593,414; FY 98 $739,639; FY 99 $700,000; FY 00 $718,211; FY 01 $538,658

Abstract: Activities for this project include information, consultation, and training related to selection of technology devices, services, and funding; legal advice and advocacy; policy development;

legislative action; technical consultation and training; publications; and online resources. WATA is a

consumer advocacy network that includes the University of Washington Center for Technology and

Disability Studies, the AT Resource Center at Easter Seal Society in Spokane, and the Washington

Protection and Advocacy System. The project is administered by the state Division of Vocational

Rehabilitation with guidance from the Consumer Majority Advisory Board.
9-78 State Technology Assistance Projects

State Technology Assistance Projects

West Virginia

West Virginia Assistive Technology System (WVATS)

West Virginia University Center for Excellence in Disabilities

Airport Research and Office Park

955 Hartman Run Road

Morgantown, WV 26505

jstewart@wvu.edu

http://www.hsc.wvu.edu/wvuced/Programs/community/WVATS

Principal Investigator: Janice A. Holland, 304/766-4694 (V)

Public Contact: Jack Stewart, Project Manager, 800/841-8436 (V/TTY, in state only); 304/293-4692

(V/TTY); Fax: 304/293-7294

Project Number: H224A20011

Start Date: July 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $530,000; FY 93 $530,000; FY 94 $620,000; FY 95 $620,000; FY 96

$573,928; FY 97 $611,928; FY 98 $716,068; FY 99 $716,068; FY 00 $520,980; FY 01 $347,320

Abstract: The WVATS project seeks to improve the availability of AT by improving existing AT

services, facilitating coordination of AT service-delivery programs, identifying and remediating gaps

in services, and promoting, developing, and/or delivering new services. These systemic changes are

carried out in response to and consonant with consumer advice, direction, and consent. The West

Virginia project has a board composed primarily of consumers and their families. State organizations

and agencies provide guidance, structure, and input. WVATS uses a “core” system directed by a

board, overseen by the Division of Rehabilitation Services, and managed on a day-to-day basis by

the West Virginia University Affiliated Center for Developmental Disabilities. WVATS supports

program staff, an information and referral system with a toll-free number, two resource centers, a

statewide awareness campaign, training programs, and seven regional technology-related assistance

teams.
State Technology Assistance Projects 9-79

State Technology Assistance Projects

Wisconsin

WisTech

Wisconsin Assistive Technology Program

Division of Supportive Living

1 West Wilson Street, Room 450

P.O. Box 7851

Madison, WI 53707-7851

abbeysu@dhfs.state.wi.us

http://www.wistech.org

Principal Investigator: Susan Abbey, Project Director

Public Contact: 608/266-1794 (V/TTY); 608/267-9880 (TTY); Fax: 608/267-3203

Project Number: H224A00013

Start Date: May 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $572,871; FY 91 $575,000; FY 92 $590,313; FY 93 $685,488; FY 94

$730,000; FY 95 $730,000; FY 96 $675,754; FY 97 $713,754; FY 98 $535,315; FY 99 $356,877;

FY 00 $356,877; FY 01 $356,877

Abstract: The Wisconsin initiative focuses on systems change through a combination of state policy

focus, use of the state’s Protection and Advocacy Agency (Wisconsin Coalition for Advocacy), and

the state’s centers for independent living. The CILs, in eight regions of the state, provide advocacy

for consumers in related AT cases at the local level. Cases of significance or that require technical

assistance are referred to the Protection and Advocacy Agency, or the state program for advocacy

work. WisTech continues to optimize consumer control and involvement by obtaining direction from

its state consumer advisory board, which is made up of 51 percent consumers or parents. WisTech

works to obtain additional state money to finance a consumer AT loan program and to continue to

fund the AT loan/try-out programs at the CILs.
9-80 State Technology Assistance Projects

State Technology Assistance Projects

Wyoming

Wyoming’s New Options in Technology (WYNOT)

University of Wyoming

Wyoming Institute for Disabilities (WIND)

1465 North Fourth Street, Suite 111

Laramie, WY 82072

wynot.uw@uwyo.edu

http://wind.uwyo.edu/wynot/wynot.htm

Principal Investigator: Keith Miller, 307/766-2762 (V)

Public Contact: Kathy Laurin, 800/861-4312 (V/TTY, in state only); 307/766-2051 (V/TTY); Fax:

307/721-2084

Project Number: H224A60002

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 94 $500,000; FY 95 $500,000; FY 96 $500,000; FY 97 $500,000; FY 98

$620,502; FY 99 $599,074; FY 00 $599,074; FY 01 $449,306

Abstract: Wyoming New Options in Technology (WYNOT) is a project designed to develop and

implement a consumer-oriented, statewide system of technology-related assistance for people with

disabilities of all ages. The Assistive Technology Advisory Council (ATAC), which consists of

consumers or providers, oversees project goals. The Protection and Advocacy (P&A) component

conducts advocacy training and provides legal representation for people with disabilities who have

been denied access to AT services or devices. WYNOT provides information and referral services;

operates a demonstration lab; provides financial resource information, outreach services, and statewide training on AT issues; and disseminates systems change information.

Subject Index

No subject index was created for this version of the NIDRR Program Directory. The Directory remains in database format at www.naric.com/search/pd. This format is considerably more effective for

subject-oriented organization of the material in the Directory.

For assistance in searching the Program Directory database, contact the staff at NARIC at 800/346-

2742 or email jchaiken@heitechservices.com

Grantees

Grantees B-1

AbleLink Technologies, Inc. ED-01-CO-0126 Colorado Springs, CO 4-40

AbleLink Technologies, Inc. ED-01-PO-3664 Colorado Springs, CO 4-36

AbleLink Technologies, Inc. ED-01-PO-3665 Colorado Springs, CO 4-37

Adaptive Environments Center, Inc. H133D010211 Boston, MA 7-2

Alabama Department of Rehabilitation

Services H224A30009 Montgomery, AL 9-25

Alaska Department of Labor and

Workforce Development H224A990001 Anchorage, AK 9-26

Alfred I. duPont Hospital for Children H133G010041 Wilmington, DE 2-66

Alfred I. duPont Institute of the

Nemours Foundation H133G000117 Wilmington, DE 3-36

Alliant University Foundation H133B70016 San Diego, CA 1-2

American Foundation for the Blind H133G010183 New York, NY 4-28

American Speech-Language-Hearing

Association H133G70055 Rockville, MD 2-75

Andrew Batavia, JD H133F010029 Miami Beach, FL 8-3

Arizona University Affiliated Programs H133B980049 Flagstaff, AZ 5-1

Arkansas Rehabilitation Services H224A90020 Little Rock, AR 9-29

Arkansas Rehabilitation Services H224C010009 Little Rock, AR 9-5

ATTAIN Inc. H224A00027 Indianapolis, IN 9-41

AVP/CEDDARS/GSAT H224A40003 Mangilao, GU 9-37

Baltimore Regional Burn Center H133A70025 Baltimore, MD 2-25

Barron Associates, Inc. ED-01-CO-0123 Charlottesville, VA 3-61

Baylor College of Medicine H133A980058 Houston, TX 2-22

Baylor College of Medicine H133A980073 Houston, TX 2-23

Baylor College of Medicine H133G000226 Houston, TX 2-93

Baylor College of Medicine H133G990039 Houston, TX 4-34

Beth Israel Medical Center H133G000120 New York, NY 2-86

Boston University H133B990005 Boston, MA 5-4

Boston University H133B990023 Boston, MA 4-5

Boston University H133G010113 Boston, MA 1-23

Boston University H133G80124 Boston, MA 1-22

Boston University H133P70014 Boston, MA 8-17

Boston University H133P990003 Boston, MA 8-18

Boston University H133P990004 Boston, MA 8-19

Boston University/

Medical Center Hospital H133N000024 Boston, MA 2-35

Brain Injury Association, Inc. H133A010607 Alexandria, VA 3-25

Brigida Hernandez H133F010002 Chicago, IL 8-9

Brown University H133G010094 Providence, RI 2-92

California Department of Rehabilitation H224A30008 Sacramento, CA 9-30

California Foundation for Independent

Living Centers (CFILC) H133A010702 Sacramento, CA 3-19

California State University H133G80119 Los Angeles, CA 4-13

Center for an Accessible Society/

Exploding Myths, Inc. H133A980045 San Diego, CA 6-4

Center for Applied Science and

Engineering H133G990115 Wilmington, DE 3-35
B-2 Grantees

Center for Applied Science and

Engineering H224A10005 Wilmington, DE 9-33

Center for Essential Management

Services H133G000195 Jericho, NY 1-25

Center for Rehabilitation Technology H133G990048 West Haverstraw, NY 3-50

Cerebral Palsy Research Foundation of

Kansas, Inc. H133B010901 Wichita, KS 1-5

CESSI ED-99-CO-0002 McLean, VA 7-12

Charlotte-Mecklenburg Hospital

Authority H133A980025 Charlotte, NC 2-55

Cherry Engineering Support

Services, Inc ED-00-CO-0079 McLean, VA 8-28

Children’s Hospital H133A990019 Boston, MA 1-16

Children’s Hospital H133B980037 Boston, MA 1-6

Children’s Hospital H224A00036 Boston, MA 9-48

Children’s Hospital Medical Center H133G000134 Cincinnati, OH 4-30

Children’s Hospital Medical Center H133G990069 Cincinnati, OH 4-29

Cleveland State University H133G990036 Cleveland, OH 1-28

CNMI Governor’s Council on

Developmental Disabilities H224A40007 Saipan, MP 9-62

Community Options, Inc. H133B980042 Washington, DC 1-3

Connecticut Department of Social

Services H224A20013 Hartford, CT 9-32

Conwal, Inc. ED-98-CO-0004 McLean, VA 8-27

Cornell University H133A70005 Ithaca, NY 1-18

Cornell University H133B980038 Ithaca, NY 1-9

Cornell University H133D010205 Ithaca, NY 7-3

Craig Hospital H133A011108 Englewood, CO 2-14

Craig Hospital H133A980020 Englewood, CO 2-47

Craig Hospital H133N000001 Englewood, CO 2-32

DakotaLink H224A20019 Pierre, SD 9-70

Dartmouth College H133G000136 Lebanon, NH 2-84

David A. Rosenthal, PhD H133F010015 Menomonie, WI 8-12

Department of Employment,

Training, and Rehabilitation H224C010004 Carson City, NV 9-15

Division of Vocational Rehabilitation H224A30014 Pago Pago, American Samoa 9-27

Duke University H133A010401 Durham, NC 3-23

Duke University H133E980026 Durham, NC 3-12

Education Development Center, Inc. H133G000204 Newton, MA 3-48

Emory University H133A980028 Atlanta, GA 2-48

Erin C. Martz H133F010022 Fayetteville, AR 8-7

Eugene Research Institute H133G010162 Eugene, OR 3-53

FAAST, Inc. H224A000001 Tallahassee, FL 9-35

FILIUS Institute H224A70001 San Juan, PR 9-67

Florida Alliance for Assistive

Technology, Inc. H224C010001 Tallahassee, FL 9-6

Foundation for Rehabilitation

Education and Research H133G990137 Rolling Meadows, IL 4-19
Grantees B-3

Future of Technology and Health ED-01-CO-0124 Iowa City, IA 3-58

Gallaudet University H133E010107 Washington, DC 3-3

George Mason University H133G000142 Fairfax, VA 4-35

Georgetown University H133B001200 Washington, DC 2-6

Georgia Center for Advanced

Telecommunications Technology

(GCATT) H133E010804 Atlanta, GA 3-6

Georgia Department of Human

Resources H224A10001 Atlanta, GA 9-36

Georgia Institute of Technology H133A000405 Atlanta, GA 3-20

Georgia Institute of Technology H224B990004 Atlanta, GA 6-18

Georgia Tech Research Corporation H133D010207 Atlanta, GA 7-5

Golden Ventures ED-00-PO-0219 Tampa, FL 1-31

Hawaii Department of Human Services,

Vocational Rehabilitation, and Services

for the Blind and Physically

Handicapped H224A10023 Honolulu, HI 9-38

Health and Disability Working Group

Boston University H133A990014 Boston, MA 2-17

Helen Hayes Hospital H133G010024 West Haverstraw, NY 2-89

Howard University H133A990020 Washington, DC 4-10

Howard University H133B000903 Washington, DC 2-7

IATP H224A90038 Springfield, IL 9-40

Illinois Assistive Technology Project H224C010022 Springfield, IL 9-7

InfoUse ED-01-CO-0127 Berkeley, CA 4-39

InfoUse H224B990001 Berkeley, CA 9-1

The Institute for Rehabilitation and

Research (TIRR) H133A011501 Houston, TX 6-14

The Institute for Rehabilitation and

Research (TIRR) H133A70015 Houston, TX 2-59

The Institute for Rehabilitation and

Research (TIRR) H133B990014 Houston, TX 2-12

The Institute for Rehabilitation and

Research (TIRR) H133D010210 Houston, TX 7-7

The Institute for Rehabilitation and

Research (TIRR) H133G010152 Houston, TX 2-94

The Institute for Rehabilitation and

Research (TIRR) H133N000004 Houston, TX 2-42

Iowa Department for the Blind H133A010104 Des Moines, IA 1-14

Iowa Department for the Blind H133G990195 Des Moines, IA 3-42

Iowa University Affiliated Program H224A00028 Iowa City, IA 9-42

KATS Network Coordinating Center H224A90002 Louisville, KY 9-44

Kelly D. Roberts H133F010040 Honolulu, HI 8-8

Kentucky Department of Vocational

Rehabilitation H224C010021 Frankfort, KY 9-9

Kessler Medical Rehabilitation Research

and Education Corporation (KMRREC) H133A011403 West Orange, NJ 6-10
B-4 Grantees

Kessler Medical Rehabilitation Research

and Education Corporation (KMRREC) H133A980030 West Orange, NJ 2-54

Kessler Medical Rehabilitation Research

and Education Corporation (KMRREC) H133G000073 West Orange, NJ 3-49

Kessler Medical Rehabilitation Research

and Education Corporation (KMRREC) H133N000022 West Orange, NJ 2-38

KRA Corporation ED-99-CO-0057 Silver Spring, MD 6-8

LATAN H224A10028 Baton Rouge, LA 9-45

Lincoln Laboratories ED-01-CO-0310 College Ward, UT 3-60

Los Amigos Research and Education

Institute, Inc. (LAREI) H133B70011 Downey, CA 2-3

Los Amigos Research and Education

Institute, Inc. (LAREI) H133B980024 Downey, CA 2-4

Los Amigos Research and Education

Institute, Inc. (LAREI) H133E003001 Downey, CA 3-1

Los Amigos Research and Education

Institute, Inc. (LAREI) H133G000004 Downey, CA 3-27

Los Amigos Research and Education

Institute, Inc. (LAREI) H133G010160 Downey, CA 2-64

Los Amigos Research and Education

Institute, Inc. (LAREI) H133N000029 Downey, CA 2-30

Louisiana Department of Health and

Hospitals H224C010024 Baton Rouge, LA 9-10

Louisiana State University Health

Sciences Center H133G990169 New Orleans, LA 4-21

Lucile Packard Children’s Hospitals at

Stanford H133G990087 Palo Alto, CA 3-30

Lucile Packard Children’s Hospitals at

Stanford H133G990103 Palo Alto, CA 3-29

Maine CITE Coordinating Center H224A90047 Augusta, ME 9-46

Marquette University H133G010069 Milwaukee, WI 2-95

Maryland Governor’s Office for

Individuals with Disabilities H224A90019 Baltimore, MD 9-47

Massachusetts Institute of Technology H133A000500 Cambridge, MA 6-9

Massachusetts Rehabilitation

Commission Psychiatric Rehabilitation

Training Program H133G70098 Boston, MA 1-21

Matheny School and Hospital H133G010153 Peapack, NJ 4-26

Matrix Research Institute H133B70007 Philadelphia, PA 1-11

Mayo Medical Center H133A980036 Rochester, MN 2-51

Medlantic Research Institute H133A990013 Washington, DC 2-15

MedStar Research Institute H133B70003 Washington, DC 2-5

MedStar Research Institute H133E990007 Washington, DC 3-4

Meeting the Challenge, Inc. H133D010004 Colorado Springs, CO 7-9

Meeting the Challenge, Inc. H133G000221 Colorado Springs, CO 6-15

Methodist Rehabilitation Center H133A980035 Jackson, MS 2-52

Methodist Rehabilitation Center H133A980067 Jackson, MS 2-18
Grantees B-5

Michael Ashley Stein, PhD H133F010012 Williamsburg, VA 8-11

Michigan Disability Rights Coalition H224A50009 East Lansing, MI 9-49

Michigan Disability Rights Coalition H224C010015 East Lansing, MI 9-13

Mississippi Department of Rehabilitation Services H224A00032 Jackson, MS 9-

51

Mississippi State University H133B010101 Mississippi State, MS 1-7

Missouri Department of Labor and Industrial Relations H224A30015 Independence, MO 9-

52

MossRehab H133A000101 Philadelphia, PA 2-20

MossRehab H133A70033 Philadelphia, PA 2-58

Mount Sinai School of Medicine H133B980013 New York, NY 4-8

Mount Sinai School of Medicine H133G990221 New York, NY 2-87

Mount Sinai School of Medicine H133N000027 New York, NY 2-39

Mount Sinai School of Medicine H133P000001 New York, NY 8-23

Nebraska Department of Education H224A90040 Lincoln, NE 9-54

Neighborhood Legal Services, Inc. H224B990002 Buffalo, NY 9-2

Nevada Rehabilitation Division H224A00037 Carson City, NV 9-55

New Jersey Protection and Advocacy, Inc. H224A20007 Trenton, NJ 9-

57

New Mexico State Department of Education H224A00017 Santa Fe, NM 9-

58

New York State Office of Advocate for Persons with Disabilities H224A00041

 Albany, NY 9-59

North Carolina Department of Health and Human Services H224A00010 Raleigh, NC 9-

60

North Carolina State University H133E990002 Raleigh, NC 3-13

North Carolina State University H133G000025 Raleigh, NC 6-16

North Carolina State University School of Design H133G80060 Raleigh, NC 3-

52

North Dakota Department of Human Services H224A30003 Cavalier, ND 9-

61

Northern Arizona University H224A40002 Phoenix, AZ 9-28

Northern Arizona University H224C010008 Phoenix, AZ 9-4

Northwestern University H133E980023 Chicago, IL 3-7

Northwestern University H133P80014 Chicago, IL 8-13

Northwestern University H133P990006 Chicago, IL 8-14

Ohio State University H133A980056 Columbus, OH 2-19

Ohio State University H133G80100 Columbus, OH 2-90

Ohio State University Research Foundation H224A40001 Columbus, OH 9-

63

Ohio Valley Center for Brain Injury Prevention and Rehabilitation H133A70032

 Columbus, OH 2-56

Oklahoma State University H224A50007 Stillwater, OK 9-64

Oklahoma State University H224C010005 Stillwater, OK 9-16

ORC Macro HN96015001 Silver Spring, MD 6-7

Oregon Disabilities Commission H224A50002 Salem, OR 9-65

Oregon Health and Science University H133A980027 Portland, OR 2-57
B-6 Grantees

Oregon Health and Science University H133B990019 Portland, OR 2-11

Oregon Health and Science University H133D010002 Portland, OR 7-11

Oregon Health and Science University H133G000154 Portland, OR 2-91

Oregon Health and Science University H133G010040 Portland, OR 4-32

Orelena Hawks Puckett Institute H133G990132 Asheville, NC 3-51

Pennsylvania State University H133G80044 University Park, PA 3-54

Physicians Against Land Mines Center

for International Rehabilitation H133E980031 Chicago, IL 3-8

Portland State University H133B990025 Portland, OR 4-9

Positive Behavioral Solutions, Inc. ED-01-PO-3726 Fletcher, NC 4-38

Public Health Institute H133D010209 Berkeley, CA 7-10

Rajinder Koul, PhD H133F010003 Lubbock, TX 8-5

Ralf W. Schlosser, PhD H133F010010 Boston, MA 8-4

Rehabilitation Engineering and Assistive

Technology Society of North America

(RESNA) H224B990005 Arlington, VA 9-3

Rehabilitation Engineering and Assistive

Technology Society of North America

(RESNA) H224C000200 Arlington, VA 9-21

Rehabilitation Institute of Chicago H133G010066 Chicago, IL 2-70

Rehabilitation Institute Research

Corporation H133B980021 Chicago, IL 2-9

Rehabilitation Institute Research

Corporation H133G010058 Chicago, IL 2-71

Rehabilitation Institute Research

Corporation H133G010098 Chicago, IL 3-41

Rehabilitation Institute Research

Corporation H133G80052 Chicago, IL 3-39

Rehabilitation Institute Research

Corporation H133G990046 Chicago, IL 2-68

Rehabilitation Institute Research

Corporation H133G990074 Chicago, IL 3-40

Research Solutions International SBIR 01-09 Menomonie, WI 1-32

Rhode Island Department of Human

Services H224A30012 Providence, RI 9-68

Roseann C. Schaaf H133F010021 Philadelphia, PA 8-10

San Francisco State University H133G000024 San Francisco, CA 3-33

Santa Clara Valley Medical Center

(SCVMC) H133A70018 San Jose, CA 2-46

Santa Clara Valley Medical Center

(SCVMC) H133N000007 San Jose, CA 2-31

Science Applications International

Corporation H133G010028 Arlington, VA 3-55

Sendero Group, LLC H133A011903 Davis, CA 3-18

Shepherd Center, Inc. H133G010009 Atlanta, GA 2-67

Shepherd Center, Inc. H133G990133 Atlanta, GA 3-38

Shepherd Center, Inc. H133N000005 Atlanta, GA 2-34
Grantees B-7

Smith-Kettlewell Eye Research Institute H133E001002 San Francisco, CA 3-2

The Smith-Kettlewell Eye Research

Institute H133G990003 San Francisco, CA 3-32

The Smith-Kettlewell Eye Research

Institute H133G990049 San Francisco, CA 3-31

SMS Consulting ED-01-CO-0122 Fort Collins, CO 3-57

Southwest Educational Development

Laboratory H133A990008 Austin, TX 6-13

Spaulding Rehabilitation Hospital H133A980034 Boston, MA 2-49

SRI International H133G000047 Menlo Park, CA 3-28

State of Maryland H224C000009 Baltimore, MD 9-11

State of Maryland Office of Individuals

with Disabilities H224C010016 Baltimore, MD 9-12

State of Minnesota Department of

Administration H224A90041 St. Paul, MN 9-50

State of Missouri H224C000015 Independence, MO 9-14

State University at Stony Brook H133G990058 Stony Brook, NY 2-88

State University of New York (SUNY)

at Buffalo H133A990010 Buffalo, NY 6-11

State University of New York (SUNY)

at Buffalo H133E980024 Buffalo, NY 3-10

State University of New York (SUNY)

at Buffalo H133E990005 Buffalo, NY 3-11

State University of New York (SUNY)

at Buffalo H133G010132 Buffalo, NY 2-85

State University of New York (SUNY)

at Buffalo H133G990086 Buffalo, NY 4-27

Syracuse University H133A990001 Syracuse, NY 6-12

Syracuse University H133G000028 Syracuse, NY 1-26

Temple University H224A20006 Philadelphia, PA 9-66

Temple University H224C000001 Philadelphia, PA 9-17

Temple University H224C010025 Philadelphia, PA 9-18

Texas Southern University H133A990024 Houston, TX 8-2

Thomas Jefferson University H133N000023 Philadelphia, PA 2-40

The Thresholds H133G90155 Chicago, IL 1-20

Through the Looking Glass H133A980001 Berkeley, CA 6-2

Through the Looking Glass H133G010054 Berkeley, CA 4-12

Through the Looking Glass H133G990130 Berkeley, CA 4-11

Touch Graphics ED-01-CO-0125 Brooklyn, NY 3-59

Touch Graphics EO-01-PO-3667 Brooklyn, NY 3-56

TransCen, Inc. H133D010212 Rockville, MD 7-4

TTAP H224A010002 Nashville, TN 9-71

United Cerebral Palsy Associations, Inc. H133A980052 Atlanta, GA 6-5

University Legal Services H224A30001 Washington, DC 9-34

University of Alabama/Birmingham H133A011201 Birmingham, AL 6-1

University of Alabama/Birmingham H133A980010 Birmingham, AL 2-45

University of Alabama/Birmingham H133B980016 Birmingham, AL 2-1
B-8 Grantees

University of Alabama/Birmingham H133G000072 Birmingham, AL 2-62

University of Alabama/Birmingham H133N000016 Birmingham, AL 2-29

University of Arkansas/Fayetteville H133G990188 Fayetteville, AR 5-6

University of Arkansas/Little Rock H133B010501 Little Rock, AR 1-1

University of Arkansas/Little Rock H133G010156 Little Rock, AR 1-19

University of Arkansas/Pine Bluff H133G000192 Pine Bluff, AR 2-63

University of California/Berkeley H133G000083 Berkeley, CA 5-7

University of California/Davis H133B980008 Davis, CA 2-2

University of California/San Francisco H133B980045 San Francisco, CA 5-2

University of Colorado Health Sciences

Center H133A980055 Denver, CO 2-24

University of Colorado Health Sciences

Center H133G80121 Denver, CO 4-14

University of Colorado Health Sciences

Center H224A40014 Denver, CO 9-31

University of Delaware H133G990182 Wilmington, DE 3-34

University of Florida H133E010106 Gainesville, FL 3-5

University of Florida H133G000227 Gainesville, FL 5-8

University of Florida College of Heath

Professions H133G990500 Gainsville, FL 4-15

University of Hawaii at Manoa H133B980043 Honolulu, HI 1-4

University of Idaho H224A20017 Moscow, ID 9-39

University of Illinois/Chicago H133A990017 Chicago, IL 5-5

University of Illinois/Chicago H133B000700 Chicago, IL 8-1

University of Illinois/Chicago H133B980046 Chicago, IL 2-8

University of Illinois/Chicago H133D010203 Chicago, IL 7-6

University of Illinois/Chicago H133G010033 Chicago, IL 4-18

University of Illinois/Chicago H133G010093 Chicago, IL 4-17

University of Illinois/Chicago H133G010136 Chicago, IL 4-16

University of Illinois/Chicago H133G010139 Chicago, IL 5-11

University of Illinois/Chicago H133G80074 Chicago, IL 7-1

University of Illinois/Chicago H133G990110 Chicago, IL 5-9

University of Illinois/Chicago H133G990143 Chicago, IL 2-69

University of Illinois/Chicago H133G990144 Chicago, IL 5-10

University of Illinois/Chicago H133P000005 Chicago, IL 8-15

University of Iowa H133A011803 Iowa City, IA 1-15

University of Kansas H133A010602 Lawrence, KS 3-21

University of Kansas H133A980048 Lawrence, KS 6-6

University of Kansas H133B980050 Lawrence, KS 5-3

University of Kansas H133P70004 Lawrence, KS 8-16

University of Kansas H224A30013 Parsons, KS 9-43

University of Kansas Center for

Research, Inc. H133B000500 Lawrence, KS 4-4

University of Kansas Center for

Research, Inc. H133G010102 Lawrence, KS 3-43

University of Kansas Center for

Research, Inc. H224C000011 Parsons, KS 9-8
Grantees B-9

University of Kansas Medical Center H133G000152 Kansas City, KS 4-20

University of Maryland H133G010111 Baltimore, MD 2-74

University of Maryland/

Baltimore County H133G000068 Baltimore, MD 2-72

University of Maryland/

Baltimore County H133G010023 Baltimore, MD 2-73

University of Massachusetts Medical

School H133G70079 Worcester, MA 2-76

University of Medicine and Dentistry

of New Jersey Medical School H133P70011 Newark, NJ 8-22

University of Miami H133A011115 Miami, FL 2-16

University of Miami H133N000017 Miami, FL 2-33

University of Michigan H133E980007 Ann Arbor, MI 3-9

University of Michigan H133G000038 Ann Arbor, MI 4-22

University of Michigan H133G000058 Ann Arbor, MI 2-77

University of Michigan H133N000009 Ann Arbor, MI 2-36

University of Michigan H133P990014 Ann Arbor, MI 8-20

University of Minnesota H133B980047 Minneapolis, MN 4-6

University of Minnesota H133G000201 Minneapolis, MN 4-24

University of Minnesota H133G010064 Minneapolis, MN 2-80

University of Minnesota H133G010077 Minneapolis, MN 2-79

University of Minnesota H133G80041 Minneapolis, MN 2-78

University of Missouri/Columbia H133A011802 Columbia, MO 1-17

University of Missouri/Columbia H133A980008 Columbia, MO 2-53

University of Missouri/Columbia H133B980022 Columbia, MO 2-10

University of Missouri/Columbia H133D010201 Columbia, MO 7-8

University of Missouri/Columbia H133G80033 Columbia, MO 2-81

University of Missouri/Columbia H133N000012 Columbia, MO 2-37

University of Missouri/Columbia H133P80009 Columbia, MO 8-21

University of Montana H133B70017 Missoula, MT 1-8

University of Montana H133G000189 Missoula, MT 1-24

University of Montana H224A10002 Missoula, MT 9-53

University of New Hampshire H133G000034 Durham, NH 4-25

University of New Hampshire H133G000150 Durham, NH 2-83

University of New Hampshire H133G990501 Durham, NH 2-82

University of New Hampshire

Technology Partnership H224A10015 Concord, NH 9-56

University of North Carolina H133G000132 Chapel Hill, NC 1-27

University of Oregon H133G010167 Eugene, OR 4-31

University of Pittsburgh H133A011107 Pittsburgh, PA 2-21

University of Pittsburgh H133E010302 Pittsburgh, PA 3-15

University of Pittsburgh H133E990001 Pittsburgh, PA 3-14

University of Pittsburgh H133N000019 Pittsburgh, PA 2-41

University of Pittsburgh H133P70013 Pittsburgh, PA 8-24

University of South Carolina

School of Medicine H224A60001 Columbia, SC 9-69

University of South Florida H133B980005 Tampa, FL 4-2
B-10 Grantees

University of South Florida H133B990022 Tampa, FL 4-3

University of South Florida H133G010046 Lakeland, FL 3-37

University of Southern California H133G000062 Los Angeles, CA 2-65

University of Texas at Austin H224A20012 Austin, TX 9-72

University of Texas/Dallas H133A70023 Dallas, TX 2-26

University of Texas Medical Branch H133A70019 Galveston, TX 2-27

University of Texas Medical Branch H133G990052 Galveston, TX 4-33

University of Texas Medical Branch H133P990001 Galveston, TX 8-25

University of the Virgin Islands/UAP H224A50005 St. Thomas, USVI 9-73

University of Washington H133A70014 Seattle, WA 2-28

University of Washington H133A980023 Seattle, WA 2-61

University of Washington H133B980017 Seattle, WA 2-13

University of Washington H133D010306 Seattle, WA 6-17

University of Washington H133N000003 Seattle, WA 2-44

University of Washington H224A30006 Seattle, WA 9-77

University of Wisconsin/Madison H133E980008 Madison, WI 3-16

University of Wisconsin/Madison H133E990006 Madison, WI 3-17

University of Wisconsin/Milwaukee H133A010403 Milwaukee, WI 3-26

University of Wisconsin/Stout H133B980040 Menomonie, WI 1-13

University of Wyoming H224A60002 Laramie, WY 9-80

Utah State University H224A90051 Logan, UT 9-74

Utah State University H224C000004 Logan, UT 9-19

Utah State University H224C010013 Logan, UT 9-20

Vcom3D, Inc. ED-01-Q-0003 Orlando, FL 1-30

Vermont Department of Aging and

Disabilities H224A00023 Waterbury, VT 9-75

Virginia Commonwealth University H133A980026 Richmond, VA 2-60

Virginia Commonwealth University H133B980036 Richmond, VA 1-12

Virginia Commonwealth University H133G80135 Richmond, VA 1-29

Virginia Commonwealth University H133N000015 Richmond, VA 2-43

Virginia Commonwealth University H133P70003 Richmond, VA 8-26

Virginia Department of Rehabilitative

Services H224C000003 Richmond, VA 9-22

Virginia Department of Rehabilitative

Services (DRS) H224A00009 Richmond, VA 9-76

Virginia Department of Rehabilitative

Services (DRS) H224C010003 Richmond, VA 9-23

Wan X. Yao, PhD H133F010031 San Antonio, TX 8-6

Washington University H133A010701 St. Louis, MO 3-22

Wayne State University H133G990219 Detroit, MI 4-23

Wayne State University and

Rehabilitation Institute of Michigan H133A70021 Detroit, MI 2-50

West Virginia University Center for

Excellence in Disabilities H224A20011 Morgantown, WV 9-78

The Western New York Independent

Living Project, Inc. H133B000002 Buffalo, NY 4-7

Western Oregon University H133A010610 Eugene, OR 3-24
Grantees B-11

WGBH Educational Foundation H133G000109 Boston, MA 3-46

WGBH Educational Foundation H133G010170 Boston, MA 3-47

WGBH Educational Foundation H133G990105 Boston, MA 3-45

Wichita State University H133G000188 Wichita, KS 3-44

Wisconsin Assistive Technology

Program H224A00013 Madison, WI 9-79

Wisconsin Department of Health and

Family Services (DHFS) H224C010017 Madison, WI 9-24

World Institute on Disability H133A990006 Oakland, CA 6-3

World Institute on Disability H133B70008 Oakland, CA 4-1

Wright State University H133B70018 Dayton, OH 1-10
Projects by State

Projects by State C-1

Alabama

Alabama Statewide Technology Access and

Response Project (STAR) System for

Alabamians with Disabilities...................... 9-25

National Spinal Cord Injury Statistical

Center........................................................... 6-1

Rehabilitation Research and Training Center

on Secondary Conditions of Spinal Cord

Injury: Promoting General Health, WellBeing, and Community Integration Through

Home-Based, Self-Directed Care ................. 2-1

Traumatic Brain Injury Care System .......... 2-45

UAB Model Spinal Cord Injury Care

System........................................................ 2-29

Use of Propranolol to Manage Behavioral

Dysfunction and Agitation in Persons with

Postacute Brain Injury ................................ 2-62

Alaska

Assistive Technologies of Alaska............... 9-26

American Samoa

American Samoa Assistive Technology

Service (ASATS) Project ........................... 9-27

Arizona

American Indian Rehabilitation Research

and Training Center ...................................... 5-1

The Arizona Loans for Assistive

Technology Program (AzLAT) .................... 9-4

Arizona Technology Access Program

(AzTAP) .................................................... 9-28

Arkansas

Arkansas Increasing Capabilities Access

Network (ICAN) ........................................ 9-29

Arkansas Technology Alternative Financing

Project (AFP) ............................................... 9-5

Developing a Rehabilitation Service

Delivery Model for Minority Farmers with

Disabilities.................................................. 2-63

The Empowerment Project: Promoting

Equality for People with Disabilities

Through Electoral Participation .................... 5-6

Maladaptation to Disability and PostTraumatic Stress Disorder: An Empirical

Study on the Reactive Phases to the Trauma

of a Disability ............................................... 8-7

Reaching Hard of Hearing Workers in the

Mainstream: Implications for Consumers and

Service Professionals.................................. 1-19

Rehabilitation Research and Training

Center on Improving Vocational

Rehabilitation Services for Individuals Who

Are Deaf or Hard of Hearing ....................... 1-1

California

Aging with Spinal Cord Injury (SCI) ........... 2-3

Assistive Technology Act Data Collection

Project .......................................................... 9-1

Assistive Technology Research Network on

Technology for Independence .................... 3-19

California Assistive Technology System

(CATS)....................................................... 9-30

Cardiovascular Disease in Women with

Spinal Cord Injury and Its Effect on

Participation in Community Activities........ 2-64

A Comprehensive System of Care for

Traumatic Brain Injury ............................... 2-46

Daily Living Context and Pressure Sores in

Consumers with Spinal Cord Injury ........... 2-65

Development of a Transitional OrthoTherapeutic Walker (TOTWalker) for

Preschool Children with Physical

Disabilities.................................................. 3-29

Disability and Rehabilitation Research

Project to Disseminate Independent Living

Research Information Through the Mass

Media to Persons with Disabilities ............... 6-4

Disability Rights and the Independent

Living Movement: The Formative Years

Nationwide ................................................... 5-7

Disability Statistics Rehabilitation Research

and Training Center ...................................... 5-2

The Effect of Ankle-Foot Orthotic Design

on Hemiplegic Gait .................................... 3-27

Ideas for the New Millennium ...................... 6-3

The Learning and Transfer of Prosthetic

Control ....................................................... 3-33

Model Spinal Cord Injury System .............. 2-31

National Resource Center for Parents with

Disabilities.................................................... 6-2
C-2 Projects by State

Occupational Therapy Evaluation and

Training Module to Guide Practice with

Parents with Physical Disabilities............... 4-12

Optimizing Assistive Technology Service

with Video Teleconferencing ..................... 3-30

Optimizing the Conditions for Reading with

the Periphery of the Visual Field ................ 3-32

Pacific Disability Business Technical

Assistance Center - Region IX ................... 7-10

Parents with Disabilities and Their

Adolescent Children ................................... 4-11

A Refreshable Braille/Tactile Graphics

Display for Human-Computer Interaction .. 3-31

Regional Spinal Cord Injury Care System of

Southern California .................................... 2-30

Rehabilitation Research and Training Center

in Neuromuscular Diseases .......................... 2-2

Rehabilitation Research and Training Center

on Aging with a Disability ........................... 2-4

Rehabilitation Research and Training Center

on Personal Assistance Services (PAS) ........ 4-1

The Relationship Between Early

Experiences and Development in Young

Children with Severe Visual Impairments:

A Cross-Cultural Perspective ..................... 4-13

Research and Training Center for Persons

Who Are Hard of Hearing or Late

Deafened ...................................................... 1-2

Robust, Low-Cost, Refreshable Braille

Display ....................................................... 3-28

Role Models for Youth with Disabilities:

Career Exploration for Youth in Transition

................................................................... 4-39

Smith-Kettlewell Rehabilitation Engineering

Research Center ........................................... 3-2

Technologies for Children with Orthopedic

Disabilities.................................................... 3-1

Wayfinding Technologies for People with

Visual Impairments: Research and

Development of an Integrated Platform ...... 3-18

Colorado

Colorado Assistive Technology Project

(CATP)....................................................... 9-31

Disability Law Knowledge Management

System: A One-Stop Clearinghouse for

Disability Information ................................ 6-15

Evaluation of Voucher Alternatives for

Early Intervention Developmental Disability

Services...................................................... 4-14

Lifetime Outcomes and Needs: Refining the

Understanding of Aging with Spinal Cord

Injury .......................................................... 2-14

Model System for Burn Injury

Rehabilitation ............................................. 2-24

NutraNet: An Internet-Based, Self-Directed

Multimedia Software System for Nutritional

Education, Planning, and Implementation

for Individuals with Mental Retardation ..... 4-40

Pocket Compass: A Palmtop ComputerBased Intelligent Aid for Individuals with

Mental Retardation to Increase

Independence and Self-Determination in

Decision Making ........................................ 4-36

Pocket Voyager: Making Palmtop

Computers Accessible to Individuals with

Mental Retardation ..................................... 4-37

QwikClick: An Intelligent Scanning

Keyboard That Maximizes the Capability of

Single-Switch Users................................... 3-57

Rocky Mountain Disability Business

Technical Assistance Center - Region VIII .. 7-9

Rocky Mountain Regional Brain Injury

System........................................................ 2-47

The Rocky Mountain Regional Spinal Injury

System........................................................ 2-32

Connecticut

Connecticut Assistive Technology

Project ........................................................ 9-32

Delaware

Delaware Assistive Technology Initiative

(DATI) ....................................................... 9-33

Investigation of the Dynamics of Spasticity

in Children with Cerebral Palsy ................. 2-66

Personalized Synthetic Speech Using

ModelTalker: Development and

Evaluation .................................................. 3-34

Specifying the Facilitative Effects of

Animation on the Understanding of Action

Word Representatives................................. 3-35

An Upper Limb Orthosis for People with Muscular Dystrophy ............................................. 3-36
Projects by State C-3

District of Columbia

Access to Rehabilitation and Empowerment

Opportunities for Minority Persons with

Disabilities.................................................... 2-7

The Consortium for Children and Youth

with Disabilities and Special Health Care

Needs. .......................................................... 2-6

Leadership Development: A New

Generation of Effective Leadership ............ 4-10

Managed Health Care for Individuals with

Disabilities.................................................... 2-5

Rehabilitation Engineering Research Center

on Hearing Enhancement ............................. 3-3

Rehabilitation Engineering Research Center

on Telerehabilitation ..................................... 3-4

Rehabilitation Research and Training Center

on Workforce Investment and Employment

Policy for Persons with Disabilities .............. 1-3

Rehabilitation Services for Persons with

Emergent Disabilities: Medical

Rehabilitation Services for Persons with

Disabilities.................................................. 2-15

University Legal Services AT Program for

the District of Columbia ............................. 9-34

Florida

AbilityForum.com ...................................... 1-31

The Development of a Tool to Enhance

Communications Between Blind and

Sighted Mathematicians, Students, and

Teachers: A Global Translation Appliance . 3-37

Equiprecise Measurement for ICIDH-2

Classification of Activity: An Innovative

Solution for Evaluating the Worldwide

Incidence and Prevalence of Disability ........ 5-8

Florida Alliance for Assistive Service and

Technology (FAAST), Inc. ........................ 9-35

Florida Alternative Financing Program ........ 9-6

Home-Based Video-Counseling for Rural

At-Risk Adolescents with Epilepsy and

Their Parents: An Accessibility and

Outcome Analysis...................................... 4-15

Long-Term Care for People with

Disabilities: An Independent Living

Perspective ................................................... 8-3

Pharmacological Management of

Dyslipidemia and Cardiovascular Disease in

Persons with Chronic Cervical SCI: A

Multicenter Collaborative Trial................... 2-16

Rehabilitation Engineering Research Center

on Technology for Successful Aging ........... 3-5

Rehabilitation Research and Training Center

for Children’s Mental Health ........................ 4-3

Rehabilitation Research and Training Center

on Positive Behavioral Support .................... 4-2

South Florida Regional Spinal Cord Injury

Model System ............................................ 2-33

Virtual Interview Exercises for Workplace

Success (VIEWS) ...................................... 1-30

Georgia

Aging After Spinal Cord Injury: Three

Decades of Longitudinal Research ............. 2-67

assistivetech.net (formerly Global Assistive

Technology Explorer (GATE)) .................. 6-18

Georgia Model Brain Injury System

(GAMBIS) ................................................. 2-48

Georgia Regional Spinal Cord Injury Care

System........................................................ 2-34

Georgia Tools for Life................................ 9-36

Information Technology Technical

Assistance and Training Center (ITTATC) . 3-20

Rehabilitation Engineering Research Center

on Mobile Wireless Technologies for

Persons with Disabilities .............................. 3-6

Southeast Disability Business Technical

Assistance Center - Region IV ..................... 7-5

TECH CONNECTIONS: Improving the

Utilization of Existing and Emerging

Rehabilitation Technology in the State

Vocational Rehabilitation Program ............... 6-5

Telerehabilitation to Support Assistive

Technology ................................................ 3-38

Guam

Guam System for Assistive Technology

(GSAT) ...................................................... 9-37

Hawaii

Assistive Technology Resource Centers of

Hawaii (ATRC).......................................... 9-38
C-4 Projects by State

A Compensatory Strategy for Students with

Learning Disabilities in Postsecondary

Education and Their Subsequent

Employment ................................................. 8-8

National Center for the Study of

Postsecondary Educational Supports: A

Rehabilitation Research and Training Center

..................................................................... 1-4

Idaho

Idaho Assistive Technology Project ........... 9-39

Illinois

Advanced Rehabilitation Research Training

................................................................... 8-15

Advanced Rehabilitation Research Training

Project in Rehabilitation Services Research

................................................................... 8-13

An Analysis of the Demography of Living

Standards, Health, and Poverty of Persons

with a Disability Living in Third World

Nations Based on Data from the World

Bank ........................................................... 5-11

Center on Emergent Disability: A National

Study on the Changing Impact of Major

Demographic, Health, Social, and

Economic Trends on the Manifestation of

Disability ...................................................... 5-5

Comparison of Two Employment Models

for Consumers with Severe Mental Illness . 1-20

Cost Effectiveness of a Computerized Oral

Reading Treatment for Aphasia.................. 3-41

Determining the Effectiveness of a

Capacity-Building Program for Individuals

with Chronic Fatigue Syndrome ................ 4-16

Developing the Capacity of Minority

Communities to Promote the Implementation

of the Americans with Disabilities Act ......... 7-1

Development of a Pressure Ulcer Prevention

Beliefs Instrument for Persons with Spinal

Cord Injury ................................................. 2-71

Development of a Rehabilitator for Arm

Therapy After Brain Injury ........................ 3-39

The Development of a Valid System for

Measuring Rehabilitation Service

Outcomes ................................................... 4-19

Development of an Intelligent Therapeutic

Stretching Device for Stroke Patients ......... 2-70

Great Lakes Disability Business Technical

Assistance Center - Region V ...................... 7-6

Illinois Assistive Technology Project

(IATP) ........................................................ 9-40

Moving Out of the Nursing Home and to

the Community: Examining and Effecting

Social Change ............................................ 4-18

A Multilevel Analysis of the Relationship

Between Domestic Violence and

Disability .................................................... 5-10

Neuromuscular Reorganization to Improve

the Control of Artificial Limbs ................... 3-40

No Seat at the Table, No Voice in the

Chorus: Perspectives of Young Men of

Color on Their Disabilities, Identities, and

Peer Mentors ................................................ 8-9

Re-Defining Wholeness: Formulating a

Minority Group Model of Disability Identity

Development ................................................ 5-9

Rehabilitation Engineering Research Center:

Improved Technology Access for Land Mine

Survivors...................................................... 3-8

Rehabilitation Engineering Research Center

on Prosthetics and Orthotics......................... 3-7

Rehabilitation Research and Training Center

on Aging with Developmental Disabilities ... 2-8

Rehabilitation Research and Training Center

on Stroke Rehabilitation ............................... 2-9

Rehabilitation Science for Engineers and

Basic Scientists: An Advanced Training

Program...................................................... 8-14

Secondary Prevention Trial of Exercise and

Diet for Improvement of Physical Fitness,

Independence, and Overall Health in Adult

Paraplegics ................................................. 2-69

The SPIRATE Project (Spinal Injury Risk

Assessment for ThromboEmbolism) .......... 2-68

Techconnect Low Interest Loan Program:

Alternative Financing Program .................... 9-7

UIC National Research and Training Center

on Psychiatric Disability ............................... 8-1

University of Illinois at Chicago Mental

Health Services Research Program

Medication Adherence Program Study

(UIC-MAPS) ............................................. 4-17
Projects by State C-5

Indiana

ATTAIN Inc. (Assistive Technology

Through Action in Indiana) ........................ 9-41

Iowa

Gesture Recognition System for Personal

Computing Applications ............................ 3-58

I.T. Works .................................................. 1-15

Iowa Program for Assistive Technology .... 9-42

Model Distance-Learning Computer

Training Program for Blind and Visually

Impaired Individuals................................... 1-14

Training Material for Blind Computer

Users .......................................................... 3-42

Kansas

Assistive Technology for Kansans

Alternative Financing Program .................... 9-8

Assistive Technology for Kansans Project . 9-43

Improving Research Information

Dissemination and Utilization to Promote

Independent Living (The RIIL Project) ........ 6-6

Independent Living for People with

Psychiatric Disabilities: Using Contextual

Cues to Remove Environmental Barriers ... 4-20

The Influence of Real-Time Frequency

Transposition on the Recognition and

Understanding of Speech by Adults Who

Are Hearing Impaired ................................ 3-44

Mental Retardation and Technology

Disability and Rehabilitation Research

Project ........................................................ 3-21

Rehabilitation Research and Training Center

on Employment Incentives........................... 1-5

Rehabilitation Research and Training Center

on Full Participation in Independent Living . 4-4

Rehabilitation Research and Training Center

on Policies Affecting Families of Children

with Disabilities............................................ 5-3

Rehabilitation Research Training Program . 8-16

Reusing AT/DME Acquired Through

Public Funds: Developing a Cost-Neutral,

Consumer-Driven Program ........................ 3-43

Kentucky

Kentucky Assistive Technology Service

(KATS) Network ....................................... 9-44

Loan Initiative Networking Kentuckians for

Assistive Technology (LINK-AT)................ 9-9

Louisiana

Louisiana Alternative Financing Program .. 9-10

Louisiana Assistive Technology Access

Network (LATAN) .................................... 9-45

Louisiana’s Self-Determination Research

Project ........................................................ 4-21

Maine

Maine Consumer Information and

Technology Training Exchange (Maine

CITE) ......................................................... 9-46

Maryland

ABLEDATA Database Program .................. 6-7

The Assistive Technology Guaranteed Loan

Program: Partnerships for Maximum AT

Access........................................................ 9-12

The Assistive Technology Guaranteed Loan

Program: Partnerships for Maxium AT

Access........................................................ 9-11

Bilateral Arm Training in Patients with

Chronic Hemiparesis.................................. 2-74

Consumers’ Participation in Nursing Home

Decision-making Preferences and

Perceptions................................................. 2-72

Increasing States’ Allocations of Medicaid

Dollars to Community-Based Care: Where

Might Policy Intervene? ............................. 2-73

Johns Hopkins University Burn Injury

Rehabilitation Model System (JHUBIRMS) ..................................................... 2-25

Maryland Technology Assistance Program

(MD TAP).................................................. 9-47

Measuring Functional Communication:

Multicultural and International Applications

................................................................... 2-75

Mid-Atlantic Disability Business Technical

Assistance Center - Region III ..................... 7-4

National Rehabilitation Information Center

(NARIC) ...................................................... 6-8

Massachusetts

Access Solutions for Rich Media: Tools,

Pathways, and Resources ........................... 3-46
C-6 Projects by State

Access to Convergent Media ..................... 3-45

Access to Digital Television ....................... 3-47

Access to Health Care Services for Persons

with Disabilities: Defining the Barriers and

Strategies for Change ................................. 2-17

The Development, Implementation, and

Evaluation of a Research Training Program

in Psychiatric Rehabilitation ....................... 8-17

Do Interventions in Augmentative and

Alternative Communication Really Work? A

Research Synthesis....................................... 8-4

An Exploratory Study of the Factors

Determining the Vocational Recovery of

People with Psychiatric Disabilities............ 1-23

Exploratory Study of the Relationship

Between Sustained Employment and

Psychosocial Adjustment of People with

Psychiatric Disabilities ............................... 1-22

The Impact of a Rehabilitation Introduction

Group on State Vocational Rehabilitation

Outcomes ................................................... 1-21

An Integrated Rehabilitation Engineering

Research Training Program ........................ 8-18

Massachusetts Assistive Technology

Partnership ................................................. 9-48

New England ADA Center and Universal

Design in Educational IT (Disability and

Business Technical Assistance Center -

Region I) ...................................................... 7-2

The New England Regional Spinal Cord

Injury Center .............................................. 2-35

The Parenting Options Project: A

Development Project for Parents with

Psychiatric Disabilities ............................... 2-76

Rehabilitation Health Services Research

Fellowship Program ................................... 8-19

Rehabilitation Research and Training Center

in Rehabilitation of Persons with Long-Term

Mental Illness ............................................... 4-5

Rehabilitation Research and Training Center

on Measuring Rehabilitation Outcomes ....... 5-4

Rehabilitation Research and Training Center

on State Systems and Employment .............. 1-6

Traumatic Brain Injury Model System ....... 2-49

Web Accessibility Initiative, Phase II ........... 6-9

Word for Word: Developing an Enhanced

Tool for Individuals with Disabilities ......... 3-48

Working It Out Together: Women with

Disabilities and Employment...................... 1-16

Michigan

Identifying Social Integration Needs

During Transition to Adulthood Following

Traumatic Brain Injury ............................... 4-22

Michigan Assistive Technology Loan Fund

................................................................... 9-13

Michigan AT Project .................................. 9-49

Quality of Life for Persons with a Spinal

Cord Injury: A Qualitative Longitudinal

Study .......................................................... 4-23

Rehabilitation Engineering Research Center

on Ergonomic Solutions for Employment .... 3-9

Repetitive Intensive Training Exercise:

Effect on Upper Extremity Motor Function

in Spasticity ................................................ 2-77

Southeastern Michigan Traumatic Brain

Injury System ............................................. 2-50

The UMHS/MSU/AACIL Rehabilitation

Research Training Program ........................ 8-20

University of Michigan Model Spinal

Cord Injury Care System ............................ 2-36

Minnesota

Effect of Electrical Stimulation on Brain

Reorganization in Subjects with Stroke ...... 2-79

Effect of Motor Learning Procedures on

Brain Reorganization in Subjects with

Stroke ......................................................... 2-78

Minnesota System of Technology to

Achieve Results (STAR) Program ............. 9-50

Model Brain Injury System ........................ 2-51

National Study on the Impact of SSI

Redetermination of 18-Year-Old Youth

with Disabilities on Employment,

Independent Living, and Community

Participation Outcomes .............................. 4-24

Personalized Health Care for Individuals

with Physical Disabilities: Satisfaction with

Services and Outcomes .............................. 2-80

Rehabilitation Research and Training

Center for Community Integration of

Persons with Mental Retardation .................. 4-6
Projects by State C-7

Mississippi

Collaborative Study of Impaired SelfAwareness After Traumatic Brain Injury .... 2-18

Mississippi Project START (Success

Through Assistive/Rehabilitative

Technology) ............................................... 9-51

RRTC on Improving Vocational

Rehabilitation Services for Individuals

Who Are Blind or Have Severe Visual

Impairments.................................................. 1-7

Traumatic Brain Injury (TBI) Model

System of Mississippi (TBIMSM).............. 2-52

Missouri

Assistive Technology in the Community.... 3-22

Assistive Techology Financial Loan

Program - $how-Me Loans ........................ 9-14

Creating Permanent Behavioral Health

Access for Rural Missourians with TBI:

Teleconferencing Application for Improved

Services...................................................... 2-81

Great Plains Disability Business Technical

Assistance Center - Region VII .................... 7-8

Missouri Arthritis Rehabilitation Research

and Training Center (MARRTC) ............... 2-10

Missouri Assistive Technology Project ...... 9-52

Missouri Model Spinal Cord Injury System 2-37

Missouri Model Traumatic Brain Injury

System (MOMBIS) .................................... 2-53

Preparing Avenues for Competitive

Employment in Information Technology

(PACE-IT) Project ..................................... 1-17

Research Enrichment Program for

Physiatrists ................................................. 8-21

Montana

MonTECH ................................................. 9-53

Rehabilitation Research and Training

Center on Rural Rehabilitation Services ....... 1-8

Self-Employment Technology Transfer

(SETT) ....................................................... 1-24

Nebraska

Nebraska Assistive Technology

Partnership ................................................. 9-54

Nevada

Nevada Assistive Technology

Collaborative .............................................. 9-55

Nevada Assistive Technology Loan Fund . 9-15

New Hampshire

Catecholaminergic Modulation of Working

Memory in Traumatic Brain Injury: An

fMRI Study of the Effects of D2

Dopaminergic and Alpha-2 Adrenergic

Agonistics .................................................. 2-84

Developing and Evaluating an Interactive

Tool to Support Literacy Learning in

Adolescents with Severe Speech and

Physical Impairments ................................. 2-82

New Hampshire Technology Partnership

Project ........................................................ 9-56

Project PATH (Promoting Access,

Transition, and Health) ............................... 2-83

Survey of Home Ownership Nationwide ... 4-25

New Jersey

Advanced Multidisciplinary Training

Program in Rehabilitation Outcomes

Research ..................................................... 8-22

Improving the Health Care Encounter for

Persons Who Have Developmental

Disabilities.................................................. 4-26

New Jersey Technology Assistive

Resource Program (TARP) ........................ 9-57

Northern New Jersey Spinal Cord Injury

System........................................................ 2-38

Northern New Jersey Traumatic Brain

Injury System (NNJTBIS)/NIDRR TBI

Model Systems National Database ............. 2-54

Traumatic Brain Injury National Data

Center......................................................... 6-10

The Use of Virtual Reality Technology for

Assessment of Driving Skills Following

Acquired Brain Injury ................................ 3-49

New Mexico

New Mexico Technology Assistance

Program (NMTAP) .................................... 9-58
C-8 Projects by State

New York

Acupuncture as an Adjunctive Treatment in

Stroke Rehabilitation .................................. 2-86

Advanced Rehabilitation Research

Training ...................................................... 8-23

An Audio/Tactile Accommodation for

Improving Access to High-Stakes

Mathematics Assessments for Students

Who Are Blind or Visually Impaired ......... 3-56

Center for International Rehabilitation

Research Information and Exchange

(CIRRIE) ................................................... 6-11

Community Reintegration and Quality of

Life Following Traumatic Brain Injury ...... 2-87

Development of an Audio/Tactile Atlas of

the World for Use by Individuals Who Are

Blind or Visually Impaired ......................... 3-59

Development of Valid and Reliable

Measures of Postural Stability .................... 2-89

Effectiveness of a System That Includes

Computer-Based Monitoring in Promoting

Care Among Older Persons with Physical

Disabilities.................................................. 4-27

Evaluating Independent Living Outcomes

for Blind and Visually Impaired Older

People: Development of a Nationally

Standardized Minimum Dataset (NSMD) .. 4-28

A Four-Year Research and Demonstration

Project to Address Ways to Improve the

Employment Practices Covered by Title I

of the Americans with Disabilities Act

(ADA)........................................................ 1-18

Interventions to Improve Memory in

Patients with Multiple Sclerosis.................. 2-88

Measuring Employer Openness to Hiring

People with Disabilities: Development of

Expanded Labor Market Survey ................ 1-26

Medication Management and Successful

Work Transition in Persons with HIV/

AIDS.......................................................... 1-25

Mount Sinai Spinal Cord Injury Model

System........................................................ 2-39

National Assistive Technology Advocacy

Project .......................................................... 9-2

National Resource Center on Supported

Living and Choice for People with Mental

Retardation and Developmental Disabilities

................................................................... 6-12

New York State Technology-Related

Assistance of Individuals with Disabilities

(TRAID) Project ........................................ 9-59

Northeast Disability and Business

Technical Assistance Center - Region II ...... 7-3

Optimizing Posture, Trunk Control, and

Reach of Wheelchair Users ........................ 3-50

Randomized Controlled Trial of AntiFatiguing Exercise to Improve Function in

Multiple Sclerosis Patients.......................... 2-85

Rehabilitation Engineering and Research

Center (RERC) on Universal Design and

the Built Environment at Buffalo ............... 3-11

Rehabilitation Engineering Research Center

on Technology Transfer ............................. 3-10

Rehabilitation Research and Training Center

for Economic Research on Employment

Policy for Persons with Disabilities .............. 1-9

Rehabilitation Research and Training Center

on Independent Living Management (RRTCILM)............................................................. 4-7

Rehabilitation Research and Training Center

on the Community Integration of Individuals

with Traumatic Brain Injury ......................... 4-8

North Carolina

Advancing Assistive Technology

Outcomes ................................................... 3-23

The Carolinas Traumatic Brain Injury

Rehabilitation and Research System

(CTBIRRS)................................................ 2-55

Exploring Universal Design: Developing

and Disseminating Universal Design

Education Material Online ......................... 6-16

Geographic Information System

Community Resource Mapping ................. 3-51

North Carolina Assistive Technology

Project ........................................................ 9-60

Positive Solutions: A Web-Based Program

for Improving Challenging Behaviors ........ 4-38

Promoting the Practice of Universal

Design ........................................................ 3-52

Rehabilitation Engineering Research Center

on Communication Enhancement .............. 3-12

Rehabilitation Engineering Research Center
Projects by State C-9

(RERC) on Universal Design and the Built

Environment at NCSU ............................... 3-13

Resolving ADA Employment Discrimination

Charges ...................................................... 1-27

North Dakota

North Dakota Interagency Program for

Assistive Technology (IPAT) ..................... 9-61

Northern Mariana Islands

Commonwealth of the Northern Mariana

Islands (CNMI) Assistive Technology

Project: System of Technology-Related

Assistance for Individuals with Disabilities

(STRAID) .................................................. 9-62

Ohio

Assistive Technology of Ohio (AT OHIO)

................................................................... 9-63

A Double-Blind, Placebo-Controlled Trial

Exploring the Efficacy of Nortriptyline and

Amantadine in the Management of PostTraumatic Agitation .................................... 2-19

A Family Intervention Following Traumatic

Brain Injury in Children ............................. 4-29

Neuropsychological Functioning and

Psychosocial Adjustment in Adolescents

with Spina Bifida and NLD ....................... 4-30

Ohio Regional Traumatic Brain Injury

Model System ............................................ 2-56

The Physiologic Basis of Functional

Electrical Stimulation on Muscle Atrophy in

Acute Spinal Cord Injury ........................... 2-90

Rehabilitation Research and Training Center

on Drugs and Disability ............................. 1-10

Variables Associated with Vocational

Success Among Persons with Severe Mental

Illness: An Empirical Study ........................ 1-28

Oklahoma

Oklahoma ABLE Tech .............................. 9-64

Oklahoma Alternative Financing Program

(AFP) ......................................................... 9-16

Oregon

Getting A Life: Research on Individual and

Person-Centered Planning Processes in

Oregon ....................................................... 4-31

Information Technology Access for Adults

with Cognitive Disabilities: Participatory

Development of a Model for Software

Accessibility, Training, and Support ........... 3-53

Men’s Personal Assistance Services Abuse

Research Project......................................... 4-32

Oregon Technology Access for Life Needs

(TALN) ...................................................... 9-65

Oregon Traumatic Brain Injury Model

System........................................................ 2-57

Northwest ADA/IT Center (Disability

Business Technical Assistance Center -

Region X) .................................................. 7-11

Rehabilitation Research and Training Center:

Health and Wellness Consortium ............... 2-11

Rehabilitation Research and Training Center

to Improve Services for Children with

Serious Emotional and Behavioral

Disabilities and Their Families ..................... 4-9

Think and Link: Email for Individuals with

Cognitive Disabilities ................................. 3-24

Traumatic Brain Injury Rehabilitation: The

Argentina Project ....................................... 2-91

Pennsylvania

Alternative Financing Program .................. 9-17

Collaboration of Upper Limb Pain in Spinal

Cord Injury ................................................. 2-21

Demonstration of a Model Spinal Cord

Injury System Center.................................. 2-40

Functional Behaviors and Parasympathetic

Nervous System Functions in Children with

Sensory Modulation Dysfunction ............... 8-10

The Mentor Project: Exemplary Practices for

Developing Supportive Mentor-Protégè

Relationships Via the Internet for People

with Significant Physical and Speech

Disabilities.................................................. 3-54

Minority Outreach Program for Alternative

Financing for Assistive Technology ........... 9-18

A Model System of Brain Injury Care in the

Philadelphia Region ................................... 2-58

The MRI/Penn Training Center on

Vocational Rehabilitation Services for

Persons with Long-Term Mental Illness ..... 1-11
C-10 Projects by State

Pennsylvania’s Initiative on Assistive

Technology (PIAT) .................................... 9-66

Rehabilitation Engineering Research Center

on Wheelchair Transportation Safety ......... 3-15

Rehabilitation Engineering Research Center

on Wheeled Mobility .................................. 3-14

Research Training in Rehabilitation Science

with Special Emphasis on Disability

Studies........................................................ 8-24

Treatment of Shoulder Dysfunction in Polio

Survivors and Elderly Adults with Lower

Extremity Impairment................................. 2-20

University of Pittsburgh Model Center on

Spinal Cord Injury ...................................... 2-41

Puerto Rico

Puerto Rico Assistive Technology Project . 9-67

Rhode Island

Rhode Island Assistive Technology Access

Partnership (ATAP) .................................... 9-68

Shake It Up for Alcohol and Substance Use

Reduction! Health Promotion and Capacity

Building for Persons with Traumatic Spinal

Cord Injuries .............................................. 2-92

South Carolina

South Carolina Assistive Technology

Program (SCATP) ...................................... 9-69

South Dakota

South Dakota Assistive Technology Project

(DakotaLink).............................................. 9-70

Tennessee

Tennessee Technology Access Project

(TTAP) ....................................................... 9-71

Texas

Assessment of Social Communication

Abilities Following Traumatic Brain Injury 2-94

Center for Minority Training and Capacity

Building for Disabilities Research ................ 8-2

The Effect of Variable-Practice Strategy on

Wheelchair-Pushing Skills and Energy

Expenditure During Wheelchair Propulsion . 8-6

Effects of Methylphenidate on Working

Memory and Cerebral Glucose Metabolism

in Persons with Severe Traumatic Brain

Injury .......................................................... 2-23

Health Promotion for Women Aging with

Disability .................................................... 2-93

Impact of Family Environment on Patient

and Family Outcome After TBI: A

Multicenter Study ....................................... 2-22

Interdisciplinary Rehabilitation Research

Training Program ....................................... 8-25

Model Spinal Cord Injury Systems

Dissemination Center ................................. 6-14

Model System for Burn Injury

Rehabilitation ............................................. 2-26

National Center for the Dissemination of

Disability Research (NCDDR) .................. 6-13

Pediatric Burn Injury Rehabilitation Model

System........................................................ 2-27

Rehabilitation Research and Training Center

on Rehabilitation Interventions Following

Traumatic Brain Injury ............................... 2-12

Self-Esteem and Women with Physical

Disabilities.................................................. 4-34

Southwest Disability Business Technical

Assistance Center - Region VI ..................... 7-7

Synthetic Speech Perception and Graphic

Symbol Acquisition in Persons with Severe

Mental Retardation ....................................... 8-5

Texas Model Spinal Cord Injury System .... 2-42

Texas Technology Access Project .............. 9-72

The Transition of Pediatric Burn Survivors

into Adulthood ........................................... 4-33

Traumatic Brain Injury Model System of

TIRR .......................................................... 2-59

U.S. Virgin Islands

U.S. Virgin Islands Technology-Related

Assistance for Individuals with Disabilities

(TRAID) .................................................... 9-73

Utah

Alternative Financing Program .................. 9-19

Omnidirectional Wheelchair to Greatly

Increase Mobility in Vocational

Rehabilitation and Independent Living

Daily Activities .......................................... 3-60
Projects by State C-11

Utah Alternative Financing Program for

Assistive Technology ................................. 9-20

Utah Assistive Technology Program

(UATP) ...................................................... 9-74

Vermont

Vermont Assistive Technology Project....... 9-75

Virginia

Alternative Financing Program .................. 9-22

Alternative Financing Technical

Assistance Project ...................................... 9-21

Assistive Technology and Cognitive

Disabilities.................................................. 3-25

The Braille Power Reader Program ........... 3-55

Enhancing Consumer-Counselor Working

Relationships in Rehabilitation: An

Empirical Research Investigation of

Counselor Expectancies and Working

Alliance as Variables for Optimizing

Consumer-Counselor Relationships,

Consumer Satisfaction, and Rehabilitation

Outcomes ................................................... 1-29

The Law and Economics of the ADA ....... 8-11

A Low-Cost, High-Performance Physical

Activity Monitor (PAM)............................. 3-61

Middle School Phonemic Awareness

Study .......................................................... 4-35

National ADA Program Assistance

Coordinator ................................................ 7-12

Rehabilitation Research and Training Center

on Workplace Supports .............................. 1-12

Research Training and Career Development

Program...................................................... 8-26

Technical Assistance for Assistive

Technology Act State Grant Program

Grantees ....................................................... 9-3

Technical Support for Assessment of

Management and Ancillary Activities of the

National Institute on Disability and

Rehabilitation Research .............................. 8-28

Technical Support for Computer and Other

Related Activities ....................................... 8-27

VCU Model Spinal Cord Injury Center ..... 2-43

Virginia Alternative Financing Program ..... 9-23

Virginia Assistive Technology System

(VATS) ....................................................... 9-76

Virginia Traumatic Brain Injury Model

System........................................................ 2-60

Washington

Multiple Sclerosis Rehabilitation Research

and Training Center .................................... 2-13

National Center on Accessible Information

Technology in Education ........................... 6-17

Northwest Regional Spinal Cord Injury

System........................................................ 2-44

University of Washington Burn Injury

Rehabilitation Model System ..................... 2-28

The University of Washington Traumatic

Brain Injury Model System ........................ 2-61

Washington Assistive Technology Alliance

(WATA)...................................................... 9-77

West Virginia

West Virginia Assistive Technology System

(WVATS) ................................................... 9-78

Wisconsin

ATOMS Project: Assistive Technology

Outcomes Measurement System Design .... 3-26

Effects of Client Race on Rehabilitation

Counselor Perception and Judgment: A

Computerized Replication .......................... 8-12

Fair and Appropriate Community

Employment (FACE): A Management

Information System (MIS) for Evaluating the

Impact of Employment Programs on Persons

with Disabilities.......................................... 1-32

Quantitative Study of Anterior and Posterior

Walker Usage Dynamics in Children with

Cerebral Palsy ............................................ 2-95

Rehabilitation Engineering Research Center

on Information Technology Access ............ 3-16

Rehabilitation Engineering Research Center

on Telecommunication Access ................... 3-17

Rehabilitation Research and Training Center

on Community Rehabilitation Programs to

Improve Employment Outcomes................ 1-13

WisLoan: A Loan Guaranty Program to

Provide Low Interest Loans to Wisconsin

Residents with Disabilities for Purchasing

Assistive Technology ................................. 9-24

WisTech ..................................................... 9-79
C-12 Projects by State

Wyoming

Wyoming’s New Options in Technology

(WYNOT) ................................................. 9-80
Principal Investigators

Principal Investigators D-1

Abery, Brian, PhD

University of Minnesota

612/625-5592 ............................................................. 2-80

Albin, Richard, PhD

University of Oregon

541/346-2464 ............................................................. 4-31

Ammerman, Robert T., PhD

Children’s Hospital Medical Center

513/636-8209 ............................................................. 4-30

Apple, David F., Jr., MD

Shepherd Center, Inc.

404/350-7353 ............................................................. 2-34

Armstrong, Thomas J., PhD

University of Michigan

734/763-3742 ............................................................... 3-9

Arnold, Nancy, PhD

University of Montana

406/243-2469 ............................................................. 1-24

Avery-Meints, Sheryl

Michigan Disability Rights Coalition

517/373-3390

800/760-4600 (V/TTY, in state only); 517/333-

2477 (V/TTY) ............................................................. 9-49

Bakke, Matthew H., PhD

Gallaudet University

202/651-5335 ............................................................... 3-3

Balcazar, Fabricio E., PhD

University of Illinois/Chicago

312/413-1646 ............................................................... 7-1

Batavia, Andrew, JD, MS

305/672-1128................................................................ 8-3

Beck, Jim

Alaska Department of Labor and Workforce

Development

800/478-4378 (V/TTY, in state only); 907/269-

3569 (V/TTY) ............................................................. 9-26

Belknap, Katherine

ORC Macro

301/608-8998, ext. 100 ................................................. 6-7

Berners-Lee, Tim

Massachusetts Institute of Technology

617/253-5702 ............................................................... 6-9

Bertocci, Gina E., PhD

University of Pittsburgh

412/383-6595 ............................................................. 3-15

Bishop, Jeffrey B., PhD

Future of Technology and Health

319/644-3787 ............................................................. 3-58

Blair, Martin E.

Utah State University

435/797-3886 ............................................................. 9-19

Blanck, Peter

Community Options, Inc.

202/721-0120 ............................................................... 1-3

Blanck, Peter D., PhD, JD

University of Iowa

319/335-9043 ............................................................. 1-15

Block, Pamela, PhD

Brown University

401/444-1832 ............................................................. 2-92

Bodine, Cathy

University of Colorado Health Sciences Center

800/255-3477 (in state only); 303/315-1280 (V);

303/837-8964 (TTY) .................................................. 9-31

Boninger, Michael L., MD

University of Pittsburgh

412/365-4850 ................................................... 2-21, 2-41

Brabyn, John A.

Smith-Kettlewell Eye Research Institute

415/345-2110....................................................... 3-2, 3-31

Braddock, David, PhD

University of Illinois/Chicago

800/996-8845 (V); 312/413-1860 (V);

312/413-0453 (TTY) .................................................... 2-8

Braunschweig, Carol, PhD

University of Illinois/Chicago

312/996-8055 ............................................................. 2-69
D-2 Principal Investigators

Brienza, David M., PhD

University of Pittsburgh

412/383-6591 (V); 412/383-6598 (TTY) ................... 3-14

Brogdon, Mary

State of Minnesota Department of

Administration

800/657-3862 (V, in state only); 800/657-

3895 (TTY, in state only); 651/296-2771 (V);

651/296-8478 (TTY) .................................................. 9-50

Brown, Catana, PhD, OTR

University of Kansas Medical Center

913/588-7195 ............................................................. 4-20

Brubaker, Clifford, PhD

University of Pittsburgh

412/383-6591 (V); 412/383-6598 (TTY) ......... 3-14, 8-24

Bruyère, Susanne, PhD

Cornell University

607/255-7727 (V) ......................................... 1-9, 1-18, 7-3

Bryant, Elizabeth A.

Georgia Institute of Technology

404/894-1413 ............................................................. 6-18

Bryen, Diane Nelson, PhD

Temple University

215/204-1356 .................................................... 9-18, 9-66

Budde, James, EdD

University of Kansas

785/864-4095 ............................................................... 6-6

Bunnell, H. Timothy, PhD

University of Delaware

302/651-6835 ............................................................. 3-34

Burgstahler, Sheryl, PhD

University of Washington

206/543-3677 ............................................................. 6-17

Burkhauser, Richard, PhD

Cornell University

607/255-7727 (V); 607/255-2891 (TTY) ..................... 1-9

Bushnik, Tamara, PhD

Santa Clara Valley Medical Center (SCVMC)

408/295-9896 ............................................................. 2-31

Butterworth, Todd

Department of Employment, Training, and

Rehabilitation

775/687-4452 ............................................................. 9-15

Camacho, Thomas J.

CNMI Governor’s Council on Developmental

Disabilities

670/664-7000 (V) ....................................................... 9-62

Cameron, Doug

Oregon Disabilities Commission

800/677-7512 (V/TTY, in state only);

503/361-1201 (V/TTY) .............................................. 9-65

Cardenas, Diana D., MD

University of Washington

206/543-8171 ............................................................. 2-44

Carey, James, PhD

University of Minnesota

612/626-2746 .................................................... 2-78, 2-79

Carney, Nancy, PhD

Oregon Health and Science University

503/494-0663 ............................................................. 2-57

Carroll, Raymond A.

Rhode Island Department of Human Services

800/752-8088 (in state only); 401/421-7005,

ext. 390 (V); 401/421-7016 (TTY)............................. 9-68

Carroll, Richard, PhD

Arizona University Affiliated Programs

928/523-7033 ............................................................... 5-1

Chan, Fong, PhD, CRC

Foundation for Rehabilitation Education and

Research

618/536-7704 ............................................................. 4-19

Cherney, Leora, PhD

Rehabilitation Institute Research Corporation

312/238-1117 .............................................................. 3-41

Chesnut, Randall, MD

Oregon Health and Science University

503/494-3217 ............................................................. 2-91

Childress, Dudley S., PhD

Northwestern University

312/238-6500 ....................................................... 3-7, 3-8
Principal Investigators D-3

Clark, Florence, PhD, OTR

University of Southern California

323/442-2875 ............................................................. 2-65

Coker, Charles C., PhD

Research Solutions International

715/235-7531 ............................................................. 1-32

Collins, James J., PhD

Boston University

617/353-0390 ............................................................. 8-18

Collins, Michael

Community Options, Inc.

202/721-0120 ............................................................... 1-3

Cook, Debbie

University of Washington

360/438-8008 (V); 360/438-8644 (TTY) ................... 9-77

Cook, Judith A., PhD

University of Illinois/Chicago

312/422-8180, ext. 19 ................................................... 8-1

Cook, Ricki

North Carolina Department of Health and

Human Services

919/850-2787 (V/TTY) .............................................. 9-60

Corrigan, John D., PhD

Ohio Valley Center for Brain Injury Prevention

and Rehabilitation

614/293-3830 ............................................................. 2-56

Dalto, Michael

State of Maryland

410/554-9230; 800/832-4827........................... 9-11, 9-12

Davies, Daniel K.

AbleLink Technologies, Inc.

719/592-0347 ............................................................. 4-36

de Jong, Jim

University of Missouri/Columbia

573/882-3600 (V) ......................................................... 7-8

DeJong, Gerben, PhD

MedStar Research Institute

202/466-1905 ..................................................... 2-5, 2-15

deLateur, Barbara J., PhD

Baltimore Regional Burn Center

410/532-4717 ............................................................. 2-25

DeLisa, Joel A., MD

Kessler Medical Rehabilitation Research and

Education Corporation (KMRREC)

973/243-6805 ............................................................. 2-38

DeLisle, Norm

Michigan Disability Rights Coalition

517/333-2477, ext. 35 ................................................. 9-13

DeRuyter, Frank, PhD

Duke University

919/684-6271 ................................................... 3-12, 3-23

DeVivo, Michael J., PhD

University of Alabama/Birmingham

205/934-3320 ............................................................... 6-1

Dijkers, Marcel, PhD

Mount Sinai School of Medicine

212/659-8587 ............................................................. 2-87

Dikmen, Sureyya S., PhD

University of Washington

206/685-0935 ............................................................. 2-61

Ditunno, John F., MD

Thomas Jefferson University

215/955-5580 ............................................................. 2-40

Doe, Tanas, PhD

California Foundation for Independent Living

Centers (CFILC)

916/325-1690 ............................................................. 3-19

Donovan, William H., MD

The Institute for Rehabilitation and Research

(TIRR)

713/797-5912 ............................................................. 2-42

Dote-Kwan, Jamie

California State University

323/343-4320 ............................................................. 4-13

Drainoni, Mari-Lynn, PhD

Health and Disability Working Group Boston

University

617/426-4447 ............................................................. 2-17
D-4 Principal Investigators

Drum, Charles, JD, PhD

Oregon Health and Science University

503/494-8047 ............................................................. 7-11

Duggan, Colette, PhD

Wayne State University

313/745-1070; 313/745-9735..................................... 4-23

Dunlap, Glen, PhD

University of South Florida

813/974-4612 ............................................................... 4-2

Dunst, Carl, PhD

Orelena Hawks Puckett Institute

828/255-0470 ............................................................. 3-51

Elrod, Susanne

University of Texas at Austin

800/828-7839 (V/TTY, in state only); 512/471-

7621 (V); 512/471-1844 (TTY) ................................. 9-72

Englander, Jeffrey, MD

Santa Clara Valley Medical Center (SCVMC)

408/885-2000 ............................................................. 2-46

Engrav, Loren H., MD

University of Washington

206/731-3209 ............................................................. 2-28

Epps, Irvine E., EdD

Texas Southern University

713/313-7224 ............................................................... 8-2

Erickson, Karen, PhD

University of New Hampshire

507/933-7444 ............................................................. 2-82

Everson, Jane M., PhD

Louisiana State University Health Sciences Center

504/942-8188 ............................................................. 4-21

Farkas, Marianne, ScD

Boston University

617/353-3549 4-5

Farra-San Nicolas, Heidi E., PhD

AVP/CEDDARS/GSAT

671/735-2482 (V) ....................................................... 9-37

Fauerbach, James A., PhD

Baltimore Regional Burn Center

410/550-0894 ............................................................. 2-25

Faulhaber, Charles B., PhD

University of California/Berkeley

510/642-3781 ............................................................... 5-7

Ferrante, Richard

University of South Carolina School of Medicine

803/935-5231 ............................................................. 9-69

Ficarro, John M.

Connecticut Department of Social Services

800/537-2549 (in state only); 860/424-4881 (V);

860/424-4839 (TTY) .................................................. 9-32

Field, Gerry

WGBH Educational Foundation

617/300-3400 ............................................................. 3-47

Fischlowitz-Leong, Barbara

Hawaii Department of Human Services, Vocational

Rehabilitation, and Services for the Blind and

Physically Handicapped

808/532-7110.............................................................. 9-38

Fisher, Nadine M., EdD

State University of New York (SUNY) at Buffalo

716/829-3141, ext. 145 ............................................... 2-85

Fletcher, Valerie

Adaptive Environments Center, Inc.

617/695-1225, ext. 26 ................................................... 7-2

Flippo, Karen, MRA

Brain Injury Association, Inc.

703/236-6000, ext. 108 ............................................... 3-25

Foley, Susan, PhD

Children’s Hospital

617/355-2075 ............................................................. 1-16

Follansbee, Robert, EdD

Education Development Center, Inc.

617/969-7100 3-48

Forrester, J. Chase, JD

KATS Network Coordinating Center

800/327-5287 (V/TTY, in state only); 502/327-

0022 (V/TTY); 502/327-9855 (TTY)......................... 9-44

Freed, Geoff

WGBH Educational Foundation

617/300-4423 ............................................................. 3-46
Principal Investigators D-5

Frieden, Lex

The Institute for Rehabilitation and Research

(TIRR)

713/797-5283 ............................................................... 7-7

Friedman, Robert, PhD

University of South Florida

813/974-4661 (V); 800/955-8771 (TTY) ..................... 4-3

Friesen, Barbara, PhD

Portland State University

503/725-8118................................................................ 4-9

Fujiura, Glenn T., PhD

University of Illinois/Chicago

312/413-1977 ..................................................... 5-5, 5-11

Fulford, Cris

ATTAIN Inc.

317/486-8808 (V); 317/486-8809 (TTY) ................... 9-41

Galea’i, Pete P.

Division of Vocational Rehabilitation

011/684/699-1529 (V); 011/684/233-7874 (TTY)..... 9-27

Gaskin, Sue

Arkansas Rehabilitation Services

501/683-6052 ..................................................... 9-5, 9-29

Gattis Jr., Robert H.

Meeting the Challenge, Inc.

719/444-0252 ............................................................. 6-15

Gaunt, Phillip, PhD

Cerebral Palsy Research Foundation of

Kansas, Inc.

316/978-6072 ............................................................... 1-5

Gay, Jane, RN

Iowa University Affiliated Program

319/356-4463 ............................................................. 9-42

Gilbride, Dennis, PhD

Syracuse University

315/443-5264 ............................................................. 1-26

Gill, Carol J., PhD

University of Illinois/Chicago

312/355-0550; 312/413-0453 (TTY) ........................... 5-9

Given, Barbara, PhD

George Mason University

703/993-4406 ............................................................. 4-35

Glenn, Mel B., MD

Spaulding Rehabilitation Hospital

617/573-2456 ............................................................. 2-49

Glueckauf, Robert L., PhD

University of Florida College of Heath

Professions

352/265-0680, ext. 4-6880 ......................................... 4-15

Goldberg, Larry R.

WGBH Educational Foundation

617/300-3486 ............................................................. 3-45

Golden, Dawn

Golden Ventures

813/835-5970 ............................................................. 1-31

Golden, Diane, PhD

State of Missouri

816/373-5193 ................................................... 9-14, 9-52

Goldman, Amy S.

Temple University

215/204-3862 (Goldman) ................................. 9-18, 9-66

Gordon, Wayne A., PhD

Mount Sinai School of Medicine

212/659-9372 (V); 212/241-8978 (TTY) ..................... 4-8

Gray, David, B., PhD

Washington University

314/286-1658 ............................................................. 3-22

Green, David, MD, PhD

Rehabilitation Institute Research Corporation

312/238-4701 ............................................................. 2-68

Gunther, Wilhelmina

Illinois Assistive Technology Project

800/852-5110 (V/TTY, in state only); 217/522-

7985 (V); 217/522-9966 (TTY) ......................... 9-7, 9-40

Hadley, Trevor, PhD

Matrix Research Institute

215/569-2240 (V); 215/569-8098 (TTY) ................... 1-11
D-6 Principal Investigators

Hagglund, Kristofer, PhD

University of Missouri/Columbia

573/882-8847 ............................................................. 2-37

Hagner, David, PhD

University of New Hampshire

603/862-4320 ............................................................. 4-25

Hammel, Joy

University of Illinois/Chicago

312/996-3513 ............................................................. 4-18

Hammond, Flora, MD

Charlotte-Mecklenburg Hospital Authority

704/355-1502; 704/355-4330..................................... 2-55

Hammond, Marilyn, PhD

Utah State University

800/524-5152; 435/797-3811 ..................................... 9-20

Hanks, Robin, PhD

Wayne State University and Rehabilitation

Institute of Michigan

313/745-9736 ............................................................. 2-50

Harkins, Judy, PhD

University of Wisconsin/Madison

202/561-5257 ............................................................. 3-17

Harris, Gerald F., PhD, PE

Marquette University

414/288-0698 ............................................................. 2-95

Hart, Karen A., PhD

The Institute for Rehabilitation and Research

(TIRR)

713/797-5946 ............................................................. 6-14

Heinemann, Allen W., PhD

Northwestern University

312/238-2802 ............................................................. 8-13

Helfrich, Christine, PhD

University of Illinois/Chicago

312/996-4626 ............................................................. 5-10

Heller, Tamar, PhD

University of Illinois/Chicago

800/996-8845 (V); 312/413-1860 (V);

312/413-0453 (TTY) .......................................... 2-8, 8-15

Helm, Phala, MD

University of Texas/Dallas

214/648-2288 ............................................................. 2-26

Henderson, Judy

Lucile Packard Children’s Hospitals at Stanford

650/237-9222 ............................................................. 3-30

Hernandez, Brigida

312/996-6824 ............................................................... 8-9

Herndon, David, MD

University of Texas Medical Branch

409/770-6731 ............................................................. 2-27

Heydt, Richard, PhD

SRI International

650/859-4452 ............................................................. 3-28

Hibbard, Mary R., PhD

Mount Sinai School of Medicine

212/659-9374 ............................................................. 8-23

High Jr., Walter M., PhD

The Institute for Rehabilitation and Research

(TIRR)

713/666-9550 ................................................... 2-12, 2-59

Hill, Barbara

Wisconsin Assistive Technology Program

608/266-1794 (V/TTY); 608/267-9880 (TTY) .......... 9-79

Hinton, Daniel E.

Science Applications International Corporation

703/248-7717 ............................................................. 3-55

Holland, Janice A.

West Virginia University Center for Excellence

in Disabilities

304/766-4694 (V) ....................................................... 9-78

Holliday, Greg, PhD

University of Missouri/Columbia

573/882-8329 ............................................................. 1-17

Holt, Judith

Utah State University

435/797-7157 ............................................................. 9-74

Howe, Marylyn

Children’s Hospital

617/355-7167 (TTY) .................................................. 9-48
Principal Investigators D-7

Hughes, Rosemary, PhD

Baylor College of Medicine

713/960-0505 ............................................................. 4-34

Hull, Raymond, PhD

Wichita State University

316/978-3271 ............................................................. 3-44

Hume, Joyce Maynard

Meeting the Challenge, Inc.

719/444-0252 ............................................................... 7-9

Hurvitz, Edward, MD

University of Michigan

734/936-7200 ............................................................. 2-77

Jackson, Aime B., MD

University of Alabama/Birmingham

205/934-3330 ...................................................... 2-1, 2-29

Jaco, Linda

Oklahoma State University

800/257-1705 (V/TTY); 405/744-9864 ..................... 9-16

Jans, Lita, PhD

InfoUse

510/549-6509 ..................................................... 4-39, 9-1

Jette, Alan M., PhD

Boston University

617/353-2704 ..................................................... 5-4, 8-19

Johns, Alicia C.

University Legal Services

202/547-0198 (V); 202/547-2657 (TTY) ................... 9-34

Johnson, David R., PhD

University of Minnesota

612/624-1062 ............................................................. 4-24

Johnson, Kurt, PhD

University of Washington

206/543-3677 ............................................................. 6-17

Johnston, Mark V., PhD

Kessler Medical Rehabilitation Research and

Education Corporation (KMRREC)

973/243-2015 ................................................... 2-54, 8-22

Johnstone, Brick, PhD

University of Missouri/Columbia

573/882-6258 ............................................................. 2-53

Jones, Cynthia

Center for an Accessible Society Exploding

Myths, Inc.

619/232-2727, ext. 111 (V); 619/234-3130 (TTY) ...... 6-4

Jones, Erica C., MPH

Public Health Institute

510/848-2980 (V); 510/848-1840 (TTY) ................... 7-10

Jones, Michael L., PhD

Shepherd Center, Inc.

404/350-7595 ............................................................. 3-38

Jones, Michael, MD

Georgia Center for Advanced

Telecommunications Technology (GCATT)

404/352-2020 ............................................................... 3-6

Jones, Robin A.

University of Illinois/Chicago

312/996-1059 ............................................................... 7-6

Kaplan, Deborah, JD

World Institute on Disability

510/251-4338 (V); 510/208-9493 (TTY);

510/763-4100 (V, main switchboard) ........................... 4-1

Kaplan, Shelley

Georgia Tech Research Corporation

404/385-0636 ............................................................... 7-5

Karshmer, Arthur I., PhD

University of South Florida

863/667-7067 ............................................................. 3-37

Keating, Thomas, PhD

Eugene Research Institute

541/342-3763 ............................................................. 3-53

Kemp, Bryan J., PhD

Los Amigos Research and Education Institute,

Inc. (LAREI)

562/401-7402 ....................................................... 2-3, 2-4

Keninger, Karen A.

Iowa Department for the Blind

515/281-1291 ................................................... 1-14, 3-42

Kennedy Smith, William, MD

Physicians Against Land Mines Center for

International Rehabilitation

312/926-0030 ............................................................... 3-8
D-8 Principal Investigators

Kickul, Grady

DakotaLink

605/773-3195 (V) ....................................................... 9-70

Kiernan, William E. PhD

Children’s Hospital

617/355-7074 ............................................................... 1-6

King, Rosemarie B., PhD

Rehabilitation Institute Research

Corporation

312/908-8038 ............................................................. 2-71

Kirchner, Corinne, PhD

American Foundation for the Blind

212/502-7640 ............................................................. 4-28

Kirshbaum, Megan, PhD

Through the Looking Glass

510/848-1112 ...................................................... 4-12, 6-2

Klaus, Alan

New Mexico State Department of

Education

800/866-2253 (V/TTY); 800/659-4915

(TTY); 505/954-8533 (V/TTY).................................. 9-58

Klein, Mary G., PhD

MossRehab

215/456-7864 ............................................................. 2-20

Kniskern, Joy

Georgia Department of Human Resources

800/497-8665 (V, in state only); 404/657-

3084 (V); 404/657-3095 (TTY) ................................. 9-36

Knorr, Kenneth

Virginia Department of Rehabilitative

Services

804/662-9995 ......................................... 9-22, 9-23, 9-76

Koncelik, Joseph

Georgia Institute of Technology

404/894-4960 ............................................................. 3-20

Koppenhaver, David, PhD

University of New Hampshire

507/933-7444 ............................................................. 2-82

Koul, Rajinder, PhD

806/743-5660, ext. 227 ................................................. 8-5

Kraft, George H., MD

University of Washington

206/543-7272 ............................................................. 2-13

Krahn, Gloria, PhD

Oregon Health and Science University

503/494-8364 ............................................................. 2-11

Krause, J. Stuart, PhD

Shepherd Center, Inc.

404/350-7551 ............................................................. 2-67

Kreutzer, Jeffrey S., PhD

Virginia Commonwealth University

804/828-3704 ................................................... 2-60, 8-26

Krupp, Lauren B., MD

State University at Stony Brook

631/444-8119.............................................................. 2-88

Kuiken, Todd A., MD, PhD

Rehabilitation Institute Research Corporation

312/238-8072 ............................................................. 3-40

Lakin, Charlie, PhD

University of Minnesota

612/624-5005 ............................................................... 4-6

Lammertse, Daniel P., MD

Craig Hospital

303/789-8220 ............................................................. 2-32

Lammertse, Daniel P., PhD

Craig Hospital

303/789-8220 ............................................................. 2-14

Landau, Steven

Touch Graphics

718/383-8265 ................................................... 3-56, 3-59

Landsburger, Sam, ScD

Los Amigos Research and Education

Institute, Inc. (LAREI)

562/401-7994 (V) ......................................................... 3-1

Lane, Joseph

State University of New York (SUNY) at

Buffalo

716/829-3141 (V); 800/628-2281 (TTY) ................... 3-10
Principal Investigators D-9

Langton, Anthony J., MS

United Cerebral Palsy Associations, Inc.

877/835-7335; 404/385-0633....................................... 6-5

LaPlante, Mitchell P., PhD

University of California/San Francisco

415/502-5210 (V, General Information); 415/502-

5217 (V, Wenger); 415/502-5216 (TTY) ...................... 5-2

Law, Dennis

California Department of Rehabilitation

916/263-8676 (V) ....................................................... 9-30

Lee, Judith A.

North Dakota Department of Human Services

800/265-4728 (V/TTY); 701/265-4807 (V/TTY) ...... 9-61

Lence, Ellen

New Jersey Protection and Advocacy, Inc.

800/342-5832 (V, in state only); 609/633-7106

(TTY); 609/292-9742 (NJ P&A Intake Unit) ............. 9-57

Lengick-Hall, Mark, PhD

Cerebral Palsy Research Foundation of Kansas, Inc.

210/458-7303 ............................................................... 1-5

Levin, Harvey S., PhD

Baylor College of Medicine

713/798-4860 ............................................................. 2-23

Lewis, Christine

University of the Virgin Islands/UAP

340/693-1323 ............................................................. 9-73

Lezotte, Dennis C., PhD

University of Colorado Health Sciences Center

303/315-6873 ............................................................. 2-24

Light, Janice, PhD

Pennsylvania State University

814/863-2010 ............................................................. 3-54

Loux, Donny

Nevada Rehabilitation Division

888/337-3839 (V, in state only); 775/687-4452 (V);

775/687-3388 (TTY) .................................................. 9-55

MacKeben, Manfred, PhD

The Smith-Kettlewell Eye Research Institute

415/345-2112.............................................................. 3-32

Magrab, Phyllis, PhD

Georgetown University

202/687-8617 (V); 202/687-5503 (TTY) ..................... 2-6

Malec, James F., PhD

Mayo Medical Center

507/255-3116.............................................................. 2-51

Mann, William C., OTR, PhD

State University of New York (SUNY) at Buffalo

800/628-2281 ...................................................... 3-5, 4-27

Martinez, Kathy

World Institute on Disability

510/251-4326 ............................................................... 6-3

Martz, Eric C.

501/846-1500 ............................................................... 8-7

Matheis, Dave

Kentucky Department of Vocational

Rehabilitation

502/564-4440 ............................................................... 9-9

May, Michael

Sendero Group, LLC

530/757-6800 ............................................................. 3-18

McAllister, Thomas W., MD

Dartmouth College

603/650-5824 ............................................................. 2-84

McCarthy, Thomas P., ScD, CRC

Massachusetts Rehabilitation Commission

Psychiatric Rehabilitation Training Program

617/204-3861 ............................................................. 1-21

McCoy, Taffy (M.L.), PhD

The Thresholds

773/880-6260, ext. 230 ............................................... 1-20

McCrory, Mac

Oklahoma State University

800/257-1705 (V/TTY); 405/744-9864 (V) ............... 9-64

McDonald, Craig, MD

University of California/Davis

530/752-2903 (V) ......................................................... 2-2

McGregor, Gail

University of Montana

800/732-0323 (V/TTY); 406/243-5676 (V/TTY) ...... 9-53
D-10 Principal Investigators

McKinley, William O., MD

Virginia Commonwealth University

804/828-0861 ............................................................. 2-43

McMahon, Brian, PhD

Virginia Commonwealth University

804/828-0197 ............................................................. 1-29

McNeal, Donald, PhD

Los Amigos Research and Education Institute,

Inc. (LAREI)

562/401-7994 (V) ......................................................... 3-1

Meidenbauer, Nancy

Rehabilitation Engineering and Assistive

Technology Society of North America (RESNA)

703/524-6686. ext. 304 (V); 703/524-6639 (TTY) .... 9-21

Menz, Fredrick E., PhD

University of Wisconsin/Stout

715/232-1389 (V); 715/232-5025 (TTY) ................... 1-13

Meyer III, Walter J., MD

University of Texas Medical Branch

409/747-8355 ............................................................. 4-33

Meythaler, Jay M., JD, MD

University of Alabama/Birmingham

205/934-2088 ............................................................. 2-62

Miller, Freeman, MD

Alfred I. duPont Hospital for Children

302/651-5921 ............................................................. 2-66

Miller, Keith

University of Wyoming

307/766-2762 ............................................................. 9-80

Miller, Nancy, PhD

University of Maryland/Baltimore County

410/455-3889 ................................................... 2-72, 2-73

Mineo Mollica, Beth A., PhD

Center for Applied Science and Engineering

302/651-6836 ................................................... 3-35, 9-33

Miranda, Maria I.

FILIUS Institute

800/496-6035 (V/TTY, from the U.S.); 800/981-

6033 (V/TTY, from Puerto Rico); 787/767-

6035 (V); 787/767-8642 (TTY) ................................. 9-67

Mitchell, Helena, PhD

Georgia Center for Advanced

Telecommunications Technology (GCATT)

404/894-0058 ............................................................... 3-6

Moore, Dennis C., EdD

Wright State University

937/775-1484 (V/TTY) .............................................. 1-10

Moore, J. Elton, PhD

Mississippi State University

662/325-2001 ............................................................... 1-7

Morris, Michael

Community Options, Inc.

202/721-0120 ............................................................... 1-3

Moss, Kathryn E., PhD

University of North Carolina

919/966-6061 ............................................................. 1-27

Mulroy, Sara J., PhD

Los Amigos Research and Education

Institute, Inc. (LAREI)

562/401-7177 ............................................................. 3-27

Mwachofi, Ari K., PhD

University of Arkansas/Pine Bluff

870/575-7143 ............................................................. 2-63

Mysiw, W. Jerry, MD

Ohio State University

614/293-3801 ................................................... 2-19, 2-90

Nash, Mark S., PhD

University of Miami

305/284-4535 ............................................................. 2-16

Nelson Bryen, Diane, PhD

Temple University

214/204-1356 ............................................................. 9-17

Nesbit, Julie M.

Louisiana Department of Health and Hospitals

225/925-9500 (V/TTY) .................................... 9-10, 9-45

Nesthurai, Shanker, MD

Boston University Medical Center Hospital

617/638-7310 ............................................................. 2-35
Principal Investigators D-11

Newman, Shelia

CESSI

703/448-6155 (V); 703/448-3079 (TTY)

.................................................................. 7-12, 8-27, 8-28

Nicholson, Joanne, PhD

University of Massachusetts Medical

School

508/856-8721 ............................................................. 2-76

Nisbet, Jan, PhD

University of New Hampshire Technology

Partnership

603/862-4320 (V/TTY) .............................................. 9-56

Nosek, Margaret A., PhD

Baylor College of Medicine

713/960-0505 ............................................................. 2-93

Novack, Thomas, PhD

University of Alabama/Birmingham

205/934-3454 ............................................................. 2-45

O’Higgins, Holly Laux

Wisconsin Department of Health and

Family Services (DHFS)

608/266-8905 ............................................................. 9-24

Oberstein, Jill S.

Northern Arizona University

800/477-9921 (V); 602/728-9532 (V);

602/728-9536 (TTY) ........................................... 9-4, 9-28

Odum, Mark X.

KRA Corporation

800/346-2742 (V); 301/562-2400 (V);

301/495-5626 (TTY) .................................................... 6-8

Olkin, Rhoda, PhD

Through the Looking Glass

800/644-2666 ............................................................. 4-11

Orr, Alberta L., MSW

American Foundation for the Blind

212/502-7640 ............................................................. 4-28

Ottenbacher, Kenneth J., PhD

University of Texas Medical Branch

409/772-3002 ............................................................. 8-25

Palfrey, Judith, MD

Children’s Hospital

617/355-6714 ............................................................. 1-16

Parker, Jerry C., PhD

University of Missouri/Columbia

573/814-6480 ................................................... 2-10, 8-21

Parker Jr., B. Eugene, PhD

Barron Associates, Inc.

/973-1215 ................................................................... 3-61

Paul-Brown, Diane

American Speech-Language-Hearing

Association

301/897-5700, ext. 4297............................................. 2-75

Peifer, John

Georgia Center for Advanced

Telecommunications Technology (GCATT)

404/894-7028 ............................................................... 3-6

Pencak, Lawrence C.

Rehabilitation Engineering and Assistive

Technology Society of North America (RESNA)

703/524-6686, ext. 305 (V); 703/524-6639 (TTY) ...... 9-3

Power, Stephen

Mississippi Department of Rehabilitation

Services

800/852-8328 (V/TTY, in state only); 601/987-

4872 (V/TTY) ............................................................. 9-51

Powers, Laurie, PhD

Oregon Health and Science University

503/232-9154, ext. 150 ............................................... 4-32

Preston, Paul, PhD

Through the Looking Glass

510/848-1112 (V); 800/644-2666 (V); 800/804-

1616 (TTY) ................................................................... 6-2

Ragnarsson, Kristian T., MD

Mount Sinai School of Medicine

212/659-9340 ............................................................. 2-39

Rahman, Tariq, PhD

Alfred I. duPont Institute of the Nemours

Foundation

302/651-6831 ............................................................. 3-36

Rasinski, Paul

Maryland Governor’s Office for Individuals with

Disabilities

800/832-4827 (800/TECH TAP, V/TTY);

410/554-9230 (V/TTY) .............................................. 9-47
D-12 Principal Investigators

Raudenbush, Daniel J., PhD

Matrix Research Institute

215/569-2240 (V); 215/569-8098 (TTY) ................... 1-11

Razzano, Lisa A., PhD

University of Illinois/Chicago

312/422-8180, ext. 20 ................................................. 4-17

Reinkensmeyer, David, PhD

Rehabilitation Institute Research Corporation

949/824-5218 ............................................................. 3-39

Roberts, Kelly D.

808/255-2101 ............................................................... 8-8

Robey, Kenneth L., PhD

Matheny School and Hospital

908/234-0618 ............................................................. 4-26

Rogers, E. Sally, ScD

Boston University

617/353-3549 4-5, 8-17

Rosano-Kazckowski, Lisa

New York State Office of Advocate for Persons

with Disabilities

800/522-4369 (V/TTY/Spanish, in state only);

518/474-2825 (V); 518/473-4231 (TTY) ................... 9-59

Rosen, Michael, PhD

MedStar Research Institute

202/877-1554 ............................................................... 3-4

Rosenberg, Steven, PhD

University of Colorado Health Sciences Center

303/315-0178 ............................................................. 4-14

Rosenthal, David A., PhD

715/232-2490 ............................................................. 8-12

Rosenthal, Mitchell, PhD

Kessler Medical Rehabilitation Research and

Education Corporation (KMRREC)

973/243-2015 ................................................... 2-54, 6-10

Roth, Elliot J., MD

Rehabilitation Institute Research Corporation

312/238-4637 ............................................................... 2-9

Roush, Daniel

Vcom3D, Inc.

407/737-7310, ext. 115 ............................................... 1-30

Rubin, Stanford E., EdD, CRC

Foundation for Rehabilitation Education

and Research

618/536-7704 ............................................................. 4-19

Russinova, Zlatka, PhD

Boston University

617/353-3549 ................................................... 1-22, 1-23

Rymer, W. Zev, MD, PhD

Rehabilitation Institute Research

Corporation

949/824-5218 ................................................... 3-39, 8-14

Sable, Janet, PhD

University of New Hampshire

603/862-3401 ............................................................. 2-83

Sack, Sara H., PhD

University of Kansas Center for

Research, Inc.

620/421-8367 ........................................... 3-43, 9-8, 9-43

Sander, Angelle M., PhD

Baylor College of Medicine

713/666-9550 ............................................................. 2-22

Schaaf, Roseann C.

215/503-9609 ............................................................. 8-10

Schlosser, Ralf W., PhD

617/373-3785 ............................................................... 8-4

Schopp, Laura, PhD

University of Missouri/Columbia

573/882-2290 ............................................................. 2-81

Schriner, Kay, PhD

University of Arkansas/Fayetteville

501/575-6417 ............................................................... 5-6

Schultheis, Maria T., PhD

Kessler Medical Rehabilitation Research

and Education Corporation (KMRREC)

973/324-3528 ............................................................. 3-49

Schultz, Mark

Nebraska Department of Education

888/806-6287 (V/TTY, in state only);

402/471-0734 (V/TTY); 402/471-0735

(V/TTY) ...................................................................... 9-54
Principal Investigators D-13

Seekins, Tom, PhD

University of Montana

406/243-5467 (V/TTY) ................................................ 1-8

Seiler, Ron

University of Idaho

800/432-8324 (V/TTY); 208/885-3559

(V/TTY) ...................................................................... 9-39

Sheldon, James R. Jr., Esq.

Neighborhood Legal Services, Inc.

716/847-0650 ............................................................... 9-2

Sherer, Mark, PhD

Methodist Rehabilitation Center

601/364-3448 ................................................... 2-18, 2-52

Shiflett, Samuel C., PhD

Beth Israel Medical Center

646/935-2244 2-86

Shivers, Steve

Alabama Department of Rehabilitation Services

800/782-7656 (V, in state only); 334/613-

3480 (V); 334/613-3519 (TTY) ................................. 9-25

Silverstein, Robert

Community Options, Inc.

202/721-0120 ............................................................... 1-3

Simon, Sheldon R., MD

Ohio State University Research Foundation

800/784-3425 (V/TTY, in state only); 614/292-

2426 (V/TTY); 614/292-3162 (TTY)......................... 9-63

Sipski, Marca L., MD

University of Miami

305/324-3174 ............................................................. 2-33

Smith, Mieko Kotake, PhD

Cleveland State University

216/687-4738 ............................................................. 1-28

Smith, Roger O., PhD

University of Wisconsin/Milwaukee

414/229-5625 (V); 414/229-5628 (TTY) ................... 3-26

Sohlberg, McKay Moore, PhD

Western Oregon University

541/346-2586 ............................................................. 3-24

Spellman, Charles R., EdD

University of Kansas

800/526-3648 (800/KAN DO IT, in state

only); 316/421-8367 (V/TTY) ................................... 9-43

Sprigle, Stephen H., PhD

Center for Rehabilitation Technology

845/786-4806 .................................................... 2-89, 3-50

Stapleton, David, PhD

Cornell University

607/255-7727 (V); 607/255-2891 (TTY) ..................... 1-9

Stein, Michael Ashley, PhD

757/221-3762 ............................................................. 8-11

Steinfeld, Edward, ArchD

State University of New York (SUNY)

at Buffalo

716/829-3485, ext. 336 ............................................... 3-11

Stock, Steven E.

AbleLink Technologies, Inc.

719/592-0347 ................................................... 4-37, 4-40

Stockford, David Noble

Maine CITE Coordinating Center

207/624-6650 (V); 207/624-6800 (TTY) ................... 9-46

Stodden, Robert, PhD

University of Hawaii at Manoa

808/956-9199 ............................................................... 1-4

Stone, John, PhD

State University of New York (SUNY)

at Buffalo

716/829-3141, ext. 169 ............................................... 6-11

Story, Molly

North Carolina State University

303/399-8133 ......................................... 3-13, 3-52, 6-16

Stringer, Anthony, PhD

Emory University

404/712-5667 ............................................................. 2-48

Struchen, Margaret, PhD

The Institute for Rehabilitation and

Research (TIRR)

713/666-9550 ............................................................. 2-94
D-14 Principal Investigators

Sutter, Stephen M.

SMS Consulting

970/635-0049 ............................................................. 3-57

Szlachcic, Yaga, MD

Los Amigos Research and Education

Institute, Inc. (LAREI)

562/401-7221 ............................................................. 2-64

Tate, Denise G., PhD

University of Michigan

734/936-7052 .................................................... 2-36, 8-20

Taylor, Renee, PhD

University of Illinois/Chicago

312/996-3412 ............................................................. 4-16

Taylor, Steven J., PhD

Syracuse University

315/443-3851 ............................................................. 6-12

Torrie, Mel

Lincoln Laboratories

435/755-2980; 435/757-5480..................................... 3-60

Trybus, Raymond J., PhD

Alliant University Foundation

858/623-2777, ext. 390 (V); 800/432-

7619 (TTY); 858/554-1540 (TTY)............................... 1-2

Tucker, Julie

Vermont Department of Aging and Disabilities

800/750-6355 (V/TTY, in state only); 802/241-

2620 (V/TTY) ............................................................. 9-75

Turnbull, Ann, EdD

785/864-7600 ...................................................... 5-3, 8-16

Turnbull, H. R., LLM

University of Kansas

785/864-7600 ............................................................... 5-3

Usiak, Douglas J.

The Western New York Independent Living

Project, Inc.

716/836-0822 ............................................................... 4-7

Vandergoot, David, PhD

Center for Essential Management Services

516/827-5960 ............................................................. 1-25

Vanderheiden, Gregg C., PhD

University of Wisconsin/Madison

608/263-5788 ................................................... 3-16, 3-17

Velozo, Craig A., PhD, OTR

University of Florida

352/846-1950; 352/333-3115 ....................................... 5-8

Vessels, Marian S.

TransCen, Inc.

800/949-4232 (V/TTY, in DC, DE, MD, PA,

VA, and WV); 301/217-0124 (V/TTY) ........................ 7-4

Wade, Shari L., PhD

Children’s Hospital Medical Center

513/636-7480 ............................................................. 4-29

Walker, Sylvia, EdD

Howard University

202/806-8086 ..................................................... 2-7, 4-10

Wallace, Stephen, PhD

San Francisco State University

415/338-6984 ............................................................. 3-33

Ward, Terry, PhD

Florida Alliance for Assistive Technology, Inc.

850/487-3278 ..................................................... 9-6, 9-35

Warschausky, Seth, PhD

University of Michigan

734/936-7052 ............................................................. 4-22

Waters, Robert L., MD

Los Amigos Research and Education

Institute, Inc. (LAREI)

562/401-7402 ..................................................... 2-3, 2-30

Watson, Douglas, PhD

University of Arkansas/Little Rock

501/686-9691 ..................................................... 1-1, 1-19

Wehman, Paul, PhD

Virginia Commonwealth University

804/828-1851 (V); 804/828-2494 (TTY) ................... 1-12

Wehmeyer, Michael, PhD

University of Kansas

785/864-0723 ............................................................. 3-21
Principal Investigators D-15

Westbrook, John, PhD

Southwest Educational Development Laboratory

512/476-6861 ............................................................. 6-13

Westling, David

Positive Behavioral Solutions, Inc.

828/681-1681 ............................................................. 4-38

Whitall, Jill, PhD

University of Maryland

410/706-0764 ............................................................. 2-74

White, Glen W., PhD

University of Kansas

785/864-4095 ........................................................ 4-4, 6-6

Whiteneck, Gale, PhD

Craig Hospital

303/789-8204 ............................................................. 2-47

Whyte, John

MossRehab

215/456-5924 ............................................................. 2-58

Wilkomm, Terese, PhD

University of New Hampshire Technology

Partnership

603/862-4320 (V/TTY) .............................................. 9-56

Wright, Christine

Lucile Packard Children’s Hospitals at Stanford

650/237-9219 ............................................................. 3-29

Wright, Kevin R.

TTAP

800/732-5059; 615/532-3122 (V/TTY) ..................... 9-71

Yao, Wan X., PhD

210/458-5792 ............................................................... 8-6

Zhang, Li-Qun, PhD

Rehabilitation Institute of Chicago

312/238-4767 ............................................................. 2-70

Projects by Program Type

E- 1 Projects by Program Type

ADA Technical Assistance Projects

Great Lakes Disability Business Technical

Assistance Center - Region V

(H133D010203) ........................................... 7-6

Great Plains Disability Business Technical

Assistance Center - Region VII

(H133D010201) ........................................... 7-8

Mid-Atlantic Disability Business Technical

Assistance Center - Region III

(H133D010212) ........................................... 7-4

National ADA Program Assistance

Coordinator (ED-99-CO-0002) .................. 7-12

National Center on Accessible Information

Technology in Education (H133D010306)

................................................................... 6-17

New England ADA Center and Universal

Design in Educational IT (Disability and

Business Technical Assistance Center -

Region I) (H133D010211) ........................... 7-2

Northeast Disability and Business Technical

Assistance Center - Region II

(H133D010205) ........................................... 7-3

Northwest ADA/IT Center (Disability

Business Technical Assistance Center -

Region X) (H133D010002) ....................... 7-11

Pacific Disability Business Technical

Assistance Center - Region IX

(H133D010209) ......................................... 7-10

Rocky Mountain Disability Business

Technical Assistance Center - Region VIII

(H133D010004) ........................................... 7-9

Southeast Disability Business Technical

Assistance Center - Region IV

(H133D010207) ........................................... 7-5

Southwest Disability Business Technical

Assistance Center - Region VI

(H133D010210) ........................................... 7-7

Advanced Rehabilitation Research Training

Projects

Advanced Multidisciplinary Training

Program in Rehabilitation Outcomes

Research (H133P70011) ............................ 8-22

Advanced Rehabilitation Research Training

(H133P000001) ......................................... 8-23

Advanced Rehabilitation Research Training

(H133P000005) ......................................... 8-15

Advanced Rehabilitation Research Training

Project in Rehabilitation Services Research

(H133P80014) ........................................... 8-13

The Development, Implementation, and

Evaluation of a Research Training Program

in Psychiatric Rehabilitation

(H133P70014) ........................................... 8-17

An Integrated Rehabilitation Engineering

Research Training Program (H133P990003)

................................................................... 8-18

Interdisciplinary Rehabilitation Research

Training Program (H133P990001)............. 8-25

Rehabilitation Health Services Research

Fellowship Program (H133P990004) ........ 8-19

Rehabilitation Research Training Program

(H133P70004) ........................................... 8-16

Rehabilitation Science for Engineers and

Basic Scientists: An Advanced Training

Program (H133P990006) ........................... 8-14

Research Enrichment Program for

Physiatrists (H133P80009) ......................... 8-21

Research Training and Career Development

Program (H133P70003) ............................. 8-26

Research Training in Rehabilitation Science

with Special Emphasis on Disability Studies

(H133P70013) ........................................... 8-24

The UMHS/MSU/AACIL Rehabilitation

Research Training Program (H133P990014)

................................................................... 8-20

Alternative Financing Programs

Alternative Financing Program

(H224C000001) ......................................... 9-17

Alternative Financing Program

(H224C000003) ......................................... 9-22

Alternative Financing Program

(H224C000004) ......................................... 9-19

Alternative Financing Technical Assistance

Project (H224C000200) ............................. 9-21

The Arizona Loans for Assistive Technology

Program (AzLAT) (H224C010008)............. 9-4

Arkansas Technology Alternative Financing

Project (AFP) (H224C010009) .................... 9-5
E-2 Projects by Program Type

Assistive Technology for Kansans

Alternative Financing Program

(H224C000011) ........................................... 9-8

The Assistive Technology Guaranteed Loan

Program: Partnerships for Maximum AT

Access (H224C010016) ............................. 9-12

The Assistive Technology Guaranteed Loan

Program: Partnerships for Maxium AT

Access (H224C000009) ............................. 9-11

Assistive Techology Financial Loan

Program - $how-Me Loans

(H224C000015) ......................................... 9-14

Florida Alternative Financing Program

(H224C010001) ........................................... 9-6

Loan Initiative Networking Kentuckians for

Assistive Technology (LINK-AT)

(H224C010021) ........................................... 9-9

Louisiana Alternative Financing Program

(H224C010024) ......................................... 9-10

Michigan Assistive Technology Loan Fund

(H224C010015) ......................................... 9-13

Minority Outreach Program for Alternative

Financing for Assistive Technology

(H224C010025) ......................................... 9-18

Nevada Assistive Technology Loan Fund

(H224C010004) ......................................... 9-15

Oklahoma Alternative Financing Program

(AFP) (H224C010005) .............................. 9-16

Techconnect Low Interest Loan Program:

Alternative Financing Program

(H224C010022) ........................................... 9-7

Utah Alternative Financing Program for

Assistive Technology (H224C010013) ...... 9-20

Virginia Alternative Financing Program

(H224C010003) ......................................... 9-23

WisLoan: A Loan Guaranty Program to

Provide Low Interest Loans to Wisconsin

Residents with Disabilities for Purchasing

Assistive Technology (H224C010017) ...... 9-24

Assistive Technology Technical Assistance

Projects

Assistive Technology Act Data Collection

Project (H224B990001) ............................... 9-1

assistivetech.net (formerly Global Assistive

Technology Explorer (GATE))

(H224B990004) ......................................... 6-18

National Assistive Technology Advocacy

Project (H224B990002) ............................... 9-2

Technical Assistance for Assistive

Technology Act State Grant Program

Grantees (H224B990005) ............................ 9-3

Disability and Rehabilitation Research

Projects

Access to Health Care Services for Persons

with Disabilities: Defining the Barriers and

Strategies for Change (H133A990014) ...... 2-17

Advancing Assistive Technology

Outcomes (H133A010401) ........................ 3-23

Assistive Technology and Cognitive

Disabilities (H133A010607) ...................... 3-25

Assistive Technology in the Community

(H133A010701) ......................................... 3-22

Assistive Technology Research Network on

Technology for Independence

(H133A010702) ......................................... 3-19

ATOMS Project: Assistive Technology

Outcomes Measurement System Design

(H133A010403) ......................................... 3-26

The Carolinas Traumatic Brain Injury

Rehabilitation and Research System

(CTBIRRS) (H133A980025) .................... 2-55

Center for International Rehabilitation

Research Information and Exchange

(CIRRIE) (H133A990010) ........................ 6-11

Center for Minority Training and Capacity

Building for Disabilities Research

(H133A990024) ........................................... 8-2

Center on Emergent Disability: A National

Study on the Changing Impact of Major

Demographic, Health, Social, and

Economic Trends on the Manifestation of

Disability (H133A990017) .......................... 5-5

Collaboration of Upper Limb Pain in Spinal

Cord Injury (H133A011107) ...................... 2-21

Collaborative Study of Impaired SelfAwareness After Traumatic Brain Injury

(H133A980067) ......................................... 2-18

A Comprehensive System of Care for

Traumatic Brain Injury (H133A70018)...... 2-46

Disability and Rehabilitation Research

Project to Disseminate Independent Living

Research Information Through the Mass
E- 3 Projects by Program Type

Media to Persons with Disabilities

(H133A980045) ........................................... 6-4

A Double-Blind, Placebo-Controlled Trial

Exploring the Efficacy of Nortriptyline and

Amantadine in the Management of PostTraumatic Agitation (H133A980056) ........ 2-19

Effects of Methylphenidate on Working

Memory and Cerebral Glucose Metabolism

in Persons with Severe Traumatic Brain

Injury (H133A980073) .............................. 2-23

A Four-Year Research and Demonstration

Project to Address Ways to Improve the

Employment Practices Covered by Title I of

the Americans with Disabilities Act (ADA)

(H133A70005) ........................................... 1-18

Georgia Model Brain Injury System

(GAMBIS) (H133A980028) ..................... 2-48

I.T. Works (H133A011803) ....................... 1-15

Ideas for the New Millennium

(H133A990006) ........................................... 6-3

Impact of Family Environment on Patient

and Family Outcome After TBI: A

Multicenter Study (H133A980058) ........... 2-22

Improving Research Information

Dissemination and Utilization to Promote

Independent Living (The RIIL Project)

(H133A980048) ........................................... 6-6

Information Technology Technical

Assistance and Training Center (ITTATC)

(H133A000405) ......................................... 3-20

Johns Hopkins University Burn Injury

Rehabilitation Model System (JHU-BIRMS)

(H133A70025) ........................................... 2-25

Leadership Development: A New

Generation of Effective Leadership

(H133A990020) ......................................... 4-10

Lifetime Outcomes and Needs: Refining the

Understanding of Aging with Spinal Cord

Injury (H133A011108) ............................... 2-14

Mental Retardation and Technology

Disability and Rehabilitation Research

Project (H133A010602) ............................. 3-21

Missouri Model Traumatic Brain Injury

System (MOMBIS) (H133A980008) ........ 2-53

Model Brain Injury System

(H133A980036) ......................................... 2-51

Model Distance-Learning Computer Training

Program for Blind and Visually Impaired

Individuals (H133A010104) ...................... 1-14

Model Spinal Cord Injury Systems

Dissemination Center (H133A011501) ...... 6-14

Model System for Burn Injury Rehabilitation

(H133A70023) ........................................... 2-26

Model System for Burn Injury Rehabilitation

(H133A980055) ......................................... 2-24

A Model System of Brain Injury Care in the

Philadelphia Region (H133A70033) .......... 2-58

National Center for the Dissemination of

Disability Research (NCDDR)

(H133A990008) ......................................... 6-13

National Resource Center for Parents with

Disabilities (H133A980001) ........................ 6-2

National Resource Center on Supported

Living and Choice for People with Mental

Retardation and Developmental Disabilities

(H133A990001) ......................................... 6-12

National Spinal Cord Injury Statistical

Center (H133A011201) ............................... 6-1

Northern New Jersey Traumatic Brain

Injury System (NNJTBIS)/NIDRR TBI

Model Systems National Database

(H133A980030) ......................................... 2-54

Ohio Regional Traumatic Brain Injury

Model System (H133A70032) ................... 2-56

Oregon Traumatic Brain Injury Model

System (H133A980027) ............................ 2-57

Pediatric Burn Injury Rehabilitation Model

System (H133A70019) .............................. 2-27

Pharmacological Management of

Dyslipidemia and Cardiovascular Disease in

Persons with Chronic Cervical SCI: A

Multicenter Collaborative Trial

(H133A011115) ......................................... 2-16

Preparing Avenues for Competitive

Employment in Information Technology

(PACE-IT) Project (H133A011802) .......... 1-17

Rehabilitation Services for Persons with

Emergent Disabilities: Medical

Rehabilitation Services for Persons with

Disabilities (H133A990013) ...................... 2-15

Rocky Mountain Regional Brain Injury

System (H133A980020) ............................ 2-47

Southeastern Michigan Traumatic Brain

Injury System (H133A70021) .................... 2-50
E-4 Projects by Program Type

TECH CONNECTIONS: Improving the

Utilization of Existing and Emerging

Rehabilitation Technology in the State

Vocational Rehabilitation Program

(H133A980052) ........................................... 6-5

Think and Link: Email for Individuals with

Cognitive Disabilities (H133A010610) ...... 3-24

Traumatic Brain Injury Care System

(H133A980010) ......................................... 2-45

Traumatic Brain Injury Model System

(H133A980034) ......................................... 2-49

Traumatic Brain Injury Model System of

TIRR (H133A70015) ................................ 2-59

Traumatic Brain Injury National Data Center

(H133A011403) ......................................... 6-10

Traumatic Brain Injury (TBI) Model System

of Mississippi (TBIMSM) (H133A980035)

................................................................... 2-52

Treatment of Shoulder Dysfunction in Polio

Survivors and Elderly Adults with Lower Extremity Impairment (H133A000101).......... 2-20

University of Washington Burn Injury

Rehabilitation Model System

(H133A70014) ........................................... 2-28

The University of Washington Traumatic

Brain Injury Model System

(H133A980023) ......................................... 2-61

Virginia Traumatic Brain Injury Model

System (H133A980026) ............................ 2-60

Wayfinding Technologies for People with

Visual Impairments: Research and

Development of an Integrated Platform

(H133A011903) ......................................... 3-18

Web Accessibility Initiative, Phase II

(H133A000500) ........................................... 6-9

Working It Out Together: Women with

Disabilities and Employment

(H133A990019) ......................................... 1-16

Fellowships (Distinguished)

Do Interventions in Augmentative and

Alternative Communication Really Work? A

Research Synthesis (H133F010010) ............ 8-4

The Effect of Variable-Practice Strategy on

Wheelchair-Pushing Skills and Energy

Expenditure During Wheelchair Propulsion

(H133F010031) ........................................... 8-6

Long-Term Care for People with

Disabilities: An Independent Living

Perspective (H133F010029) ........................ 8-3

Synthetic Speech Perception and Graphic

Symbol Acquisition in Persons with Severe

Mental Retardation (H133F010003) ............ 8-5

Fellowships (Merit)

A Compensatory Strategy for Students with

Learning Disabilities in Postsecondary

Education and Their Subsequent

Employment (H133F010040) ...................... 8-8

Effects of Client Race on Rehabilitation

Counselor Perception and Judgment: A

Computerized Replication (H133F010015)

................................................................... 8-12

Functional Behaviors and Parasympathetic

Nervous System Functions in Children with

Sensory Modulation Dysfunction

(H133F010021) ......................................... 8-10

The Law and Economics of the ADA

(H133F010012) ......................................... 8-11

Maladaptation to Disability and PostTraumatic Stress Disorder: An Empirical

Study on the Reactive Phases to the Trauma

of a Disability (H133F010022) .................... 8-7

No Seat at the Table, No Voice in the Chorus:

Perspectives of Young Men of Color on

Their Disabilities, Identities, and Peer

Mentors (H133F010002) ............................. 8-9

Field Initiated Projects (FIPs)

Access Solutions for Rich Media: Tools,

Pathways, and Resources (H133G000109)

................................................................... 3-46

Access to Convergent Media

(H133G990105) ......................................... 3-45

Access to Digital Television

(H133G010170) ......................................... 3-47

Acupuncture as an Adjunctive Treatment in

Stroke Rehabilitation (H133G000120) ...... 2-86

Aging After Spinal Cord Injury: Three

Decades of Longitudinal Research

(H133G010009) ......................................... 2-67

An Analysis of the Demography of Living

Standards, Health, and Poverty of Persons
E- 5 Projects by Program Type

with a Disability Living in Third World

Nations Based on Data from the World

Bank (H133G010139) ............................... 5-11

Assessment of Social Communication

Abilities Following Traumatic Brain Injury

(H133G010152) ......................................... 2-94

Bilateral Arm Training in Patients with

Chronic Hemiparesis (H133G010111) ....... 2-74

The Braille Power Reader Program

(H133G010028) ......................................... 3-55

Cardiovascular Disease in Women with

Spinal Cord Injury and Its Effect on

Participation in Community Activities

(H133G010160) ......................................... 2-64

Catecholaminergic Modulation of Working

Memory in Traumatic Brain Injury: An

fMRI Study of the Effects of D2

Dopaminergic and Alpha-2 Adrenergic

Agonistics (H133G000136) ....................... 2-84

Community Reintegration and Quality of

Life Following Traumatic Brain Injury

(H133G990221) ......................................... 2-87

Comparison of Two Employment Models

for Consumers with Severe Mental Illness

(H133G90155) ........................................... 1-20

Consumers’ Participation in Nursing Home

Decision-making Preferences and

Perceptions (H133G000068) ..................... 2-72

Cost Effectiveness of a Computerized Oral

Reading Treatment for Aphasia

(H133G010098) ......................................... 3-41

Creating Permanent Behavioral Health

Access for Rural Missourians with TBI:

Teleconferencing Application for Improved

Services (H133G80033) ............................ 2-81

Daily Living Context and Pressure Sores in

Consumers with Spinal Cord Injury

(H133G000062) ......................................... 2-65

Determining the Effectiveness of a CapacityBuilding Program for Individuals with

Chronic Fatigue Syndrome

(H133G010136) ......................................... 4-16

Developing a Rehabilitation Service

Delivery Model for Minority Farmers with

Disabilities (H133G000192) ...................... 2-63

Developing and Evaluating an Interactive

Tool to Support Literacy Learning in

Adolescents with Severe Speech and Physical

Impairments (H133G990501) .................... 2-82

Developing the Capacity of Minority

Communities to Promote the Implementation

of the Americans with Disabilities Act

(H133G80074) ............................................. 7-1

Development of a Pressure Ulcer

Prevention Beliefs Instrument for Persons

with Spinal Cord Injury (H133G010058) .. 2-71

Development of a Rehabilitator for Arm

Therapy After Brain Injury (H133G80052)

................................................................... 3-39

The Development of a Tool to Enhance

Communications Between Blind and

Sighted Mathematicians, Students, and

Teachers: A Global Translation Appliance

(H133G010046) ......................................... 3-37

Development of a Transitional OrthoTherapeutic Walker (TOTWalker) for

Preschool Children with Physical Disabilities

(H133G990103) ......................................... 3-29

The Development of a Valid System for

Measuring Rehabilitation Service Outcomes

(H133G990137) ......................................... 4-19

Development of an Intelligent Therapeutic

Stretching Device for Stroke Patients

(H133G010066) ......................................... 2-70

Development of Valid and Reliable

Measures of Postural Stability

(H133G010024) ......................................... 2-89

Disability Law Knowledge Management

System: A One-Stop Clearinghouse for

Disability Information (H133G000221) ..... 6-15

Disability Rights and the Independent

Living Movement: The Formative Years

Nationwide (H133G000083) ....................... 5-7

The Effect of Ankle-Foot Orthotic Design

on Hemiplegic Gait (H133G000004) ......... 3-27

Effect of Electrical Stimulation on Brain

Reorganization in Subjects with Stroke

(H133G010077) ......................................... 2-79

Effect of Motor Learning Procedures on

Brain Reorganization in Subjects with

Stroke (H133G80041) ............................... 2-78
E-6 Projects by Program Type

Effectiveness of a System That Includes

Computer-Based Monitoring in Promoting

Care Among Older Persons with Physical

Disabilities (H133G990086) ...................... 4-27

The Empowerment Project: Promoting

Equality for People with Disabilities

Through Electoral Participation

(H133G990188) ........................................... 5-6

Enhancing Consumer-Counselor Working

Relationships in Rehabilitation: An Empirical

Research Investigation of Counselor

Expectancies and Working Alliance as

Variables for Optimizing ConsumerCounselor Relationships, Consumer

Satisfaction, and Rehabilitation Outcomes

(H133G80135) ........................................... 1-29

Equiprecise Measurement for ICIDH-2

Classification of Activity: An Innovative

Solution for Evaluating the Worldwide

Incidence and Prevalence of Disability

(H133G000227) ........................................... 5-8

Evaluating Independent Living Outcomes

for Blind and Visually Impaired Older

People: Development of a Nationally

Standardized Minimum Dataset (NSMD)

(H133G010183) ......................................... 4-28

Evaluation of Voucher Alternatives for Early

Intervention Developmental Disability

Services (H133G80121) ............................ 4-14

An Exploratory Study of the Factors

Determining the Vocational Recovery of

People with Psychiatric Disabilities

(H133G010113) ......................................... 1-23

Exploratory Study of the Relationship

Between Sustained Employment and

Psychosocial Adjustment of People with

Psychiatric Disabilities (H133G80124) ...... 1-22

Exploring Universal Design: Developing

and Disseminating Universal Design

Education Material Online (H133G000025)

................................................................... 6-16

A Family Intervention Following Traumatic

Brain Injury in Children (H133G990069) .. 4-29

Geographic Information System Community

Resource Mapping (H133G990132) .......... 3-51

Getting A Life: Research on Individual and

Person-Centered Planning Processes in

Oregon (H133G010167) ............................ 4-31

Health Promotion for Women Aging with

Disability (H133G000226) ........................ 2-93

Home-Based Video-Counseling for Rural

At-Risk Adolescents with Epilepsy and

Their Parents: An Accessibility and

Outcome Analysis (H133G990500) .......... 4-15

Identifying Social Integration Needs During

Transition to Adulthood Following

Traumatic Brain Injury (H133G000038).... 4-22

The Impact of a Rehabilitation Introduction

Group on State Vocational Rehabilitation

Outcomes (H133G70098) .......................... 1-21

Improving the Health Care Encounter for

Persons Who Have Developmental

Disabilities (H133G010153) ...................... 4-26

Increasing States’ Allocations of Medicaid

Dollars to Community-Based Care: Where

Might Policy Intervene? (H133G010023) .. 2-73

Independent Living for People with

Psychiatric Disabilities: Using Contextual

Cues to Remove Environmental Barriers

(H133G000152) ......................................... 4-20

The Influence of Real-Time Frequency

Transposition on the Recognition and

Understanding of Speech by Adults Who

Are Hearing Impaired (H133G000188) ..... 3-44

Information Technology Access for Adults

with Cognitive Disabilities: Participatory

Development of a Model for Software

Accessibility, Training, and Support

(H133G010162) ......................................... 3-53

Interventions to Improve Memory in Patients

with Multiple Sclerosis (H133G990058) ... 2-88

Investigation of the Dynamics of Spasticity

in Children with Cerebral Palsy

(H133G010041) ......................................... 2-66

The Learning and Transfer of Prosthetic

Control (H133G000024) ............................ 3-33

Louisiana’s Self-Determination Research

Project (H133G990169) ............................. 4-21

Measuring Employer Openness to Hiring

People with Disabilities: Development of

Expanded Labor Market Survey

(H133G000028) ......................................... 1-26

Measuring Functional Communication:

Multicultural and International Applications

(H133G70055) ........................................... 2-75
E- 7 Projects by Program Type

Medication Management and Successful

Work Transition in Persons with HIV/AIDS

(H133G000195) ......................................... 1-25

Men’s Personal Assistance Services Abuse

Research Project (H133G010040) ............. 4-32

The Mentor Project: Exemplary Practices for

Developing Supportive Mentor-Protégè

Relationships Via the Internet for People with

Significant Physical and Speech Disabilities

(H133G80044) ........................................... 3-54

Middle School Phonemic Awareness Study

(H133G000142) ......................................... 4-35

Moving Out of the Nursing Home and to the

Community: Examining and Effecting Social

Change (H133G010033) ........................... 4-18

A Multilevel Analysis of the Relationship

Between Domestic Violence and Disability

(H133G990144) ......................................... 5-10

National Study on the Impact of SSI

Redetermination of 18-Year-Old Youth with

Disabilities on Employment, Independent

Living, and Community Participation

Outcomes (H133G000201) ........................ 4-24

Neuromuscular Reorganization to Improve

the Control of Artificial Limbs

(H133G990074) ......................................... 3-40

Neuropsychological Functioning and

Psychosocial Adjustment in Adolescents

with Spina Bifida and NLD

(H133G000134) ......................................... 4-30

Occupational Therapy Evaluation and

Training Module to Guide Practice with

Parents with Physical Disabilities

(H133G010054) ......................................... 4-12

Optimizing Assistive Technology Service

with Video Teleconferencing

(H133G990087) ......................................... 3-30

Optimizing Posture, Trunk Control, and

Reach of Wheelchair Users

(H133G990048) ......................................... 3-50

Optimizing the Conditions for Reading with

the Periphery of the Visual Field

(H133G990003) ......................................... 3-32

The Parenting Options Project: A

Development Project for Parents with

Psychiatric Disabilities (H133G70079) ...... 2-76

Parents with Disabilities and Their

Adolescent Children

(H133G990130) ......................................... 4-11

Personalized Health Care for Individuals

with Physical Disabilities: Satisfaction with

Services and Outcomes (H133G010064) ... 2-80

Personalized Synthetic Speech Using

ModelTalker: Development and Evaluation

(H133G990182) ......................................... 3-34

The Physiologic Basis of Functional

Electrical Stimulation on Muscle Atrophy in

Acute Spinal Cord Injury (H133G80100) .. 2-90

Project PATH (Promoting Access,

Transition, and Health) (H133G000150) ... 2-83

Promoting the Practice of Universal Design

(H133G80060) ........................................... 3-52

Quality of Life for Persons with a Spinal

Cord Injury: A Qualitative Longitudinal

Study (H133G990219) .............................. 4-23

Quantitative Study of Anterior and Posterior

Walker Usage Dynamics in Children with

Cerebral Palsy (H133G010069) ................. 2-95

Randomized Controlled Trial of AntiFatiguing Exercise to Improve Function in

Multiple Sclerosis Patients (H133G010132)

................................................................... 2-85

Re-Defining Wholeness: Formulating a

Minority Group Model of Disability Identity

Development (H133G990110) ..................... 5-9

Reaching Hard of Hearing Workers in the

Mainstream: Implications for Consumers

and Service Professionals (H133G010156)

................................................................... 1-19

A Refreshable Braille/Tactile Graphics

Display for Human-Computer Interaction

(H133G990049) ......................................... 3-31

The Relationship Between Early

Experiences and Development in Young

Children with Severe Visual Impairments:

A Cross-Cultural Perspective

(H133G80119) ........................................... 4-13

Repetitive Intensive Training Exercise:

Effect on Upper Extremity Motor Function

in Spasticity (H133G000058) .................... 2-77

Resolving ADA Employment

Discrimination Charges (H133G000132) .. 1-27
E-8 Projects by Program Type

Reusing AT/DME Acquired Through

Public Funds: Developing a Cost-Neutral,

Consumer-Driven Program

(H133G010102) ......................................... 3-43

Robust, Low-Cost, Refreshable Braille

Display (H133G000047) ........................... 3-28

Secondary Prevention Trial of Exercise and

Diet for Improvement of Physical Fitness,

Independence, and Overall Health in Adult

Paraplegics (H133G990143) ...................... 2-69

Self-Employment Technology Transfer

(SETT) (H133G000189) ........................... 1-24

Self-Esteem and Women with Physical

Disabilities (H133G990039) ...................... 4-34

Shake It Up for Alcohol and Substance Use

Reduction! Health Promotion and Capacity

Building for Persons with Traumatic Spinal

Cord Injuries (H133G010094) ................... 2-92

Specifying the Facilitative Effects of

Animation on the Understanding of Action

Word Representatives (H133G990115) ..... 3-35

The SPIRATE Project (Spinal Injury Risk

Assessment for ThromboEmbolism)

(H133G990046) ......................................... 2-68

Survey of Home Ownership Nationwide

(H133G000034) ......................................... 4-25

Telerehabilitation to Support Assistive

Technology (H133G990133) ..................... 3-38

Training Material for Blind Computer Users

(H133G990195) ......................................... 3-42

The Transition of Pediatric Burn Survivors

into Adulthood (H133G990052) ................ 4-33

Traumatic Brain Injury Rehabilitation:

The Argentina Project (H133G000154) ..... 2-91

University of Illinois at Chicago Mental

Health Services Research Program

Medication Adherence Program Study

(UIC-MAPS) (H133G010093) .................. 4-17

An Upper Limb Orthosis for People with

Muscular Dystrophy (H133G000117) ....... 3-36

Use of Propranolol to Manage Behavioral

Dysfunction and Agitation in Persons with

Postacute Brain Injury (H133G000072) .... 2-62

The Use of Virtual Reality Technology for

Assessment of Driving Skills Following

Acquired Brain Injury (H133G000073) ..... 3-49

Variables Associated with Vocational Success

Among Persons with Severe Mental Illness:

An Empirical Study (H133G990036) ........ 1-28

Word for Word: Developing an Enhanced

Tool for Individuals with Disabilities

(H133G000204) ......................................... 3-48

Model Spinal Cord Injury Systems

Demonstration of a Model Spinal Cord

Injury System Center (H133N000023) ...... 2-40

Georgia Regional Spinal Cord Injury Care

System (H133N000005) ............................ 2-34

Missouri Model Spinal Cord Injury System

(H133N000012) ......................................... 2-37

Model Spinal Cord Injury System

(H133N000007) ......................................... 2-31

Mount Sinai Spinal Cord Injury Model

System (H133N000027) ............................ 2-39

The New England Regional Spinal Cord

Injury Center (H133N000024) ................... 2-35

Northern New Jersey Spinal Cord Injury

System (H133N000022) ............................ 2-38

Northwest Regional Spinal Cord Injury

System (H133N000003) ............................ 2-44

Regional Spinal Cord Injury Care System

of Southern California (H133N000029) .... 2-30

The Rocky Mountain Regional Spinal

Injury System (H133N000001) .................. 2-32

South Florida Regional Spinal Cord Injury

Model System (H133N000017) ................. 2-33

Texas Model Spinal Cord Injury System

(H133N000004) ......................................... 2-42

UAB Model Spinal Cord Injury Care

System (H133N000016) ............................ 2-29

University of Michigan Model Spinal Cord

Injury Care System (H133N000009) ......... 2-36

University of Pittsburgh Model Center on

Spinal Cord Injury (H133N000019) .......... 2-41

VCU Model Spinal Cord Injury Center

(H133N000015) ......................................... 2-43

NIDRR Contracts

Technical Support for Assessment of

Management and Ancillary Activities of the

National Institute on Disability and

Rehabilitation Research (ED-00-CO-0079)

................................................................... 8-28
E- 9 Projects by Program Type

Technical Support for Computer and Other

Related Activities (ED-98-CO-0004) ......... 8-27

Rehabilitation Engineering Research Centers

(RERCs)

Rehabilitation Engineering and Research

Center (RERC) on Universal Design and the

Built Environment at Buffalo

(H133E990005) ......................................... 3-11

Rehabilitation Engineering Research Center:

Improved Technology Access for Land

Mine Survivors (H133E980031) .................. 3-8

Rehabilitation Engineering Research

Center on Communication Enhancement

(H133E980026) ......................................... 3-12

Rehabilitation Engineering Research Center

on Ergonomic Solutions for Employment

(H133E980007) ........................................... 3-9

Rehabilitation Engineering Research Center

on Hearing Enhancement (H133E010107) .. 3-3

Rehabilitation Engineering Research Center

on Information Technology Access

(H133E980008) ......................................... 3-16

Rehabilitation Engineering Research Center

on Mobile Wireless Technologies for

Persons with Disabilities (H133E010804) ... 3-6

Rehabilitation Engineering Research Center

on Prosthetics and Orthotics (H133E980023) 3-7

Rehabilitation Engineering Research Center

on Technology for Successful Aging

(H133E010106) ........................................... 3-5

Rehabilitation Engineering Research Center

on Technology Transfer (H133E980024) .. 3-10

Rehabilitation Engineering Research Center

on Telecommunication Access

(H133E990006) ......................................... 3-17

Rehabilitation Engineering Research Center

on Telerehabilitation (H133E990007) .......... 3-4

Rehabilitation Engineering Research Center

on Wheelchair Transportation Safety

(H133E010302) ......................................... 3-15

Rehabilitation Engineering Research Center

on Wheeled Mobility (H133E990001) ....... 3-14

Rehabilitation Engineering Research Center

(RERC) on Universal Design and the Built

Environment at NCSU (H133E990002) .... 3-13

Smith-Kettlewell Rehabilitation Engineering

Research Center (H133E001002) ................ 3-2

Technologies for Children with Orthopedic

Disabilities (H133E003001)......................... 3-1

Rehabilitation Research and Training Centers

(RRTCs)

Access to Rehabilitation and Empowerment

Opportunities for Minority Persons with

Disabilities (H133B000903) ........................ 2-7

Aging with Spinal Cord Injury (SCI)

(H133B70011) ............................................. 2-3

American Indian Rehabilitation Research

and Training Center (H133B980049) .......... 5-1

The Consortium for Children and Youth

with Disabilities and Special Health Care

Needs (H133B001200) ................................ 2-6

Disability Statistics Rehabilitation Research

and Training Center (H133B980045) .......... 5-2

Managed Health Care for Individuals with

Disabilities (H133B70003) .......................... 2-5

Missouri Arthritis Rehabilitation Research

and Training Center (MARRTC)

(H133B980022) ......................................... 2-10

The MRI/Penn Training Center on

Vocational Rehabilitation Services for

Persons with Long-Term Mental Illness

(H133B70007) ........................................... 1-11

Multiple Sclerosis Rehabilitation Research

and Training Center (H133B980017) ........ 2-13

National Center for the Study of

Postsecondary Educational Supports: A

Rehabilitation Research and Training Center

(H133B980043) ........................................... 1-4

Rehabilitation Research and Training Center

for Children’s Mental Health (H133B990022) 4-

3

Rehabilitation Research and Training Center

for Community Integration of Persons with

Mental Retardation (H133B980047) ............ 4-6

Rehabilitation Research and Training Center

for Economic Research on Employment

Policy for Persons with Disabilities

(H133B980038) ........................................... 1-9

Rehabilitation Research and Training Center:

Health and Wellness Consortium

(H133B990019) ......................................... 2-11
E-10 Projects by Program Type

Rehabilitation Research and Training Center

in Neuromuscular Diseases (H133B980008)

..................................................................... 2-2

Rehabilitation Research and Training Center

in Rehabilitation of Persons with Long-Term

Mental Illness (H133B990023) .................... 4-5

Rehabilitation Research and Training Center

on Aging with a Disability (H133B980024)

..................................................................... 2-4

Rehabilitation Research and Training Center

on Aging with Developmental Disabilities

(H133B980046) ........................................... 2-8

Rehabilitation Research and Training Center

on Community Rehabilitation Programs to

Improve Employment Outcomes

(H133B980040) ......................................... 1-13

Rehabilitation Research and Training Center

on Drugs and Disability (H133B70018) .... 1-10

Rehabilitation Research and Training Center

on Employment Incentives (H133B010901) 1-5

Rehabilitation Research and Training Center

on Full Participation in Independent Living

(H133B000500) ........................................... 4-4

Rehabilitation Research and Training Center

on Improving Vocational Rehabilitation

Services for Individuals Who Are Deaf or

Hard of Hearing (H133B010501) ................ 1-1

Rehabilitation Research and Training Center

on Independent Living Management (RRTCILM) (H133B000002) ................................. 4-7

Rehabilitation Research and Training Center

on Measuring Rehabilitation Outcomes

(H133B990005) ........................................... 5-4

Rehabilitation Research and Training Center

on Personal Assistance Services (PAS)

(H133B70008) ............................................. 4-1

Rehabilitation Research and Training Center

on Policies Affecting Families of Children

with Disabilities (H133B980050) ................ 5-3

Rehabilitation Research and Training Center

on Positive Behavioral Support

(H133B980005) ........................................... 4-2

Rehabilitation Research and Training Center

on Rehabilitation Interventions Following

Traumatic Brain Injury (H133B990014) .... 2-12

Rehabilitation Research and Training

Center on Rural Rehabilitation Services

(H133B70017) ............................................. 1-8

Rehabilitation Research and Training Center

on Secondary Conditions of Spinal Cord

Injury: Promoting General Health, WellBeing, and Community Integration Through

Home-Based, Self-Directed Care

(H133B980016) ........................................... 2-1

Rehabilitation Research and Training Center

on State Systems and Employment

(H133B980037) ........................................... 1-6

Rehabilitation Research and Training Center

on Stroke Rehabilitation (H133B980021) .... 2-9

Rehabilitation Research and Training Center

on the Community Integration of Individuals

with Traumatic Brain Injury (H133B980013)

..................................................................... 4-8

Rehabilitation Research and Training Center

on Workforce Investment and Employment

Policy for Persons with Disabilities

(H133B980042) ........................................... 1-3

Rehabilitation Research and Training Center

on Workplace Supports (H133B980036) ... 1-12

Rehabilitation Research and Training Center

to Improve Services for Children with

Serious Emotional and Behavioral

Disabilities and Their Families

(H133B990025) ........................................... 4-9

Research and Training Center for Persons

Who Are Hard of Hearing or Late Deafened

(H133B70016) ............................................. 1-2

RRTC on Improving Vocational

Rehabilitation Services for Individuals Who

Are Blind or Have Severe Visual

Impairments (H133B010101) ...................... 1-7

UIC National Research and Training Center

on Psychiatric Disability (H133B000700) ... 8-1

Small Business Innovative Research (SBIR)

Phase I

An Audio/Tactile Accommodation for

Improving Access to High-Stakes

Mathematics Assessments for Students

Who Are Blind or Visually Impaired

(EO-01-PO-3667) ...................................... 3-56
E- 11 Projects by Program Type

Pocket Compass: A Palmtop ComputerBased Intelligent Aid for Individuals with

Mental Retardation to Increase

Independence and Self-Determination in

Decision Making (ED-01-PO-3664) .......... 4-36

Pocket Voyager: Making Palmtop

Computers Accessible to Individuals with

Mental Retardation (ED-01-PO-3665) ....... 4-37

Positive Solutions: A Web-Based Program

for Improving Challenging Behaviors

(ED-01-PO-3726) ...................................... 4-38

Virtual Interview Exercises for Workplace

Success (VIEWS) (ED-01-Q-0003) ........... 1-30

Small Business Innovative Research (SBIR

Phase II)

AbilityForum.com (ED-00-PO-0219) ........ 1-31

Development of an Audio/Tactile Atlas of

the World for Use by Individuals Who Are

Blind or Visually Impaired

(ED-01-CO-0125) ...................................... 3-59

Fair and Appropriate Community

Employment (FACE): A Management

Information System (MIS) for Evaluating the

Impact of Employment Programs on

Persons with Disabilities (SBIR 01-09) ...... 1-32

Gesture Recognition System for Personal

Computing Applications

(ED-01-CO-0124) ...................................... 3-58

A Low-Cost, High-Performance Physical

Activity Monitor (PAM) (ED-01-CO-0123)

................................................................... 3-61

NutraNet: An Internet-Based, Self-Directed

Multimedia Software System for Nutritional

Education, Planning, and Implementation for

Individuals with Mental Retardation

(ED-01-CO-0126) ...................................... 4-40

Omnidirectional Wheelchair to Greatly

Increase Mobility in Vocational

Rehabilitation and Independent Living

Daily Activities (ED-01-CO-0310) ............ 3-60

QwikClick: An Intelligent Scanning

Keyboard That Maximizes the Capability of

Single-Switch Users (ED-01-CO-0122) .... 3-57

Role Models for Youth with Disabilities:

Career Exploration for Youth in Transition

(ED-01-CO-0127) ...................................... 4-39

State Technology Assistance Projects

Alabama Statewide Technology Access and

Response Project (STAR) System for

Alabamians with Disabilities (H224A30009) 9-

25

American Samoa Assistive Technology

Service (ASATS) Project (H224A30014) .. 9-27

Arizona Technology Access Program

(AzTAP) (H224A40002) ........................... 9-28

Arkansas Increasing Capabilities Access

Network (ICAN) (H224A90020) .............. 9-29

Assistive Technologies of Alaska

(H224A990001) ......................................... 9-26

Assistive Technology for Kansans Project

(H224A30013) ........................................... 9-43

Assistive Technology of Ohio (AT OHIO)

(H224A40001) ........................................... 9-63

Assistive Technology Resource Centers of

Hawaii (ATRC) (H224A10023) ................ 9-38

ATTAIN Inc. (Assistive Technology

Through Action in Indiana) (H224A00027)

................................................................... 9-41

California Assistive Technology System

(CATS) (H224A30008) ............................. 9-30

Colorado Assistive Technology Project

(CATP) (H224A40014) ............................. 9-31

Commonwealth of the Northern Mariana

Islands (CNMI) Assistive Technology

Project: System of Technology-Related

Assistance for Individuals with Disabilities

(STRAID) (H224A40007) ........................ 9-62

Connecticut Assistive Technology Project

(H224A20013) ........................................... 9-32

Delaware Assistive Technology Initiative

(DATI) (H224A10005) .............................. 9-33

Florida Alliance for Assistive Service and

Technology (FAAST), Inc.

(H224A000001) ......................................... 9-35

Georgia Tools for Life (H224A10001) ...... 9-36

Guam System for Assistive Technology

(GSAT) (H224A40003) ............................. 9-37

Idaho Assistive Technology Project

(H224A20017) ........................................... 9-39

Illinois Assistive Technology Project (IATP)

(H224A90038) ........................................... 9-40

Iowa Program for Assistive Technology

(H224A00028) ........................................... 9-42
E-12 Projects by Program Type

Kentucky Assistive Technology Service

(KATS) Network (H224A90002) .............. 9-44

Louisiana Assistive Technology Access

Network (LATAN) (H224A10028) ........... 9-45

Maine Consumer Information and

Technology Training Exchange (Maine

CITE) (H224A90047) ............................... 9-46

Maryland Technology Assistance Program

(MD TAP) (H224A90019) ........................ 9-47

Massachusetts Assistive Technology

Partnership (H224A00036) ........................ 9-48

Michigan AT Project (H224A50009)......... 9-49

Minnesota System of Technology to

Achieve Results (STAR) Program

(H224A90041) ........................................... 9-50

Mississippi Project START (Success

Through Assistive/Rehabilitative

Technology) (H224A00032) ...................... 9-51

Missouri Assistive Technology Project

(H224A30015) ........................................... 9-52

MonTECH (H224A10002) ....................... 9-53

Nebraska Assistive Technology

Partnership (H224A90040) ........................ 9-54

Nevada Assistive Technology

Collaborative (H224A00037) .................... 9-55

New Hampshire Technology Partnership

Project (H224A10015) ............................... 9-56

New Jersey Technology Assistive Resource

Program (TARP) (H224A20007) .............. 9-57

New Mexico Technology Assistance

Program (NMTAP) (H224A00017)........... 9-58

New York State Technology-Related

Assistance of Individuals with Disabilities

(TRAID) Project (H224A00041) ............... 9-59

North Carolina Assistive Technology

Project (H224A00010) ............................... 9-60

North Dakota Interagency Program for

Assistive Technology (IPAT)

(H224A30003) ........................................... 9-61

Oklahoma ABLE Tech (H224A50007)..... 9-64

Oregon Technology Access for Life Needs

(TALN) (H224A50002) ............................ 9-65

Pennsylvania’s Initiative on Assistive

Technology (PIAT) (H224A20006) ........... 9-66

Puerto Rico Assistive Technology Project

(H224A70001) ........................................... 9-67

Rhode Island Assistive Technology Access

Partnership (ATAP) (H224A30012) .......... 9-68

South Carolina Assistive Technology

Program (SCATP) (H224A60001) ............ 9-69

South Dakota Assistive Technology Project

(DakotaLink) (H224A20019) .................... 9-70

Tennessee Technology Access Project

(TTAP) (H224A010002) ........................... 9-71

Texas Technology Access Project

(H224A20012) ........................................... 9-72

U.S. Virgin Islands Technology-Related

Assistance for Individuals with Disabilities

(TRAID) (H224A50005) ........................... 9-73

University Legal Services AT Program for

the District of Columbia (H224A30001) .... 9-34

Utah Assistive Technology Program

(UATP) (H224A90051) ............................. 9-74

Vermont Assistive Technology Project

(H224A00023) ........................................... 9-75

Virginia Assistive Technology System

(VATS) (H224A00009) ............................. 9-76

Washington Assistive Technology Alliance

(WATA) (H224A30006) ............................ 9-77

West Virginia Assistive Technology

System (WVATS) (H224A20011) ............. 9-78

WisTech (H224A00013) ............................ 9-79

Wyoming’s New Options in Technology

(WYNOT) (H224A60002) ........................ 9-80

Utilization Projects

ABLEDATA Database Program

(HN96015001) ............................................. 6-7

National Rehabilitation Information Center

(NARIC) (ED-99-CO-0057) ....................... 6-8