NIDRR Program 

Directory

2012

Produced by the National Rehabilitation

Information Center

A project funded by The National Institute on Disability and 

Rehabilitation Research, project number ED-OSE-10-0074.
The mission of the National Institute on Disability and Rehabilitation Research 

is to generate new knowledge and promote its effective use to improve the abilities 

of people with disabilities to perform activities of their choice in the community, and also 

to expand society’s capacity to provide full opportunities and accommodations for its

citizens with disabilities.

2012 Program Directory for the

National Institute on Disability

and Rehabilitation Research (NIDRR)

The NIDRR Program Directory is produced by the

National Rehabilitation Information Center

Landover, MD

Mark X. Odum

Director

Jessica H. Chaiken

Media and Information Services Manager

Catherine E. Graves

Information Specialist
The full text of this public domain publication is available at the NARIC’s home page at www.naric.com 

and in alternate formats upon request. For more information, please contact us at:

NARIC

8400 Corporate Drive, Suite 500

Landover, MD 20785

800/346-2742 or 301/459-5900 (Voice) 

or 301/459-5984 (TTY). 
Contents

Introduction......................................................................................................i

Research and Development:

Employment ...................................................................................................1

Health and Function........................................................................................2

Technology for Access and Function..............................................................3

Participation and Community Living..............................................................4

Disability Demographics ................................................................................5

Knowledge Translation

Knowledge Translation ...................................................................................6

ADA National Networks.................................................................................7

Capacity Building

Capacity Building for Rehabilitation Research Training................................8

Indices

Subject............................................................................................................ A

Grantees ......................................................................................................... B

Project by State .............................................................................................. C

Principal Investigators ...................................................................................D

Projects by Program Type ...............................................................................E

Model System, Data Centers, and Collaborative Projects..............................F

NIDRR Program Directory FY 2012 - Introduction

i-1

The mission of NIDRR is to generate new knowledge and promote its effective use to improve the abilities of people with disabilities to perform activities of their choice in the community, and also to expand 

society’s capacity to provide full opportunities and accommodations for its citizens with disabilities. NIDRR conducts comprehensive and coordinated programs of research and related activities to assist in the 

achievement of the full inclusion, social integration, employment, and independent living of people with 

disabilities. This edition of the NIDRR Program Directory lists all projects funded by NIDRR during the 

2012 fiscal year.

The contextual paradigm of disability and rehabilitation research, originally described in NIDRR’s Long 

Range Plan, 1999-2003, continues to frame the NIDRR research agenda. This paradigm overcomes the 

limitations imposed by a medical model of disability. It maintains that “disability is a product of the 

interaction between characteristics of the individual (e.g., conditions or impairments, functional status, 

or personal and social qualities) and the characteristics of the natural, built, cultural, and social environments.” (NIDRR Long-Range Plan 1999-2003.)

NIDRR’s Research Program

Under the Long Range Plan 2005-2009, NIDRR-funded research activities fall within three strategic 

arenas: Research and Development, Capacity Building, and Knowledge Translation. Most NIDRR grantees are universities or organizations of rehabilitation or related services. NIDRR makes awards through 

several program mechanisms including ADA National Network Projects, Advanced Rehabilitation 

Research Training Projects, Disability and Rehabilitation Research Projects, Mary E. Switzer Research 

Fellowships, Model Systems, NIDRR Contracts, Rehabilitation Engineering Research Centers, Rehabilitation Research and Training Centers, and Small Business Innovative Research. Program descriptions are 

provided below. 

ADA National Network Projects

NIDRR funds the ADA National Network to provide information, training, and technical assistance 

related to the Americans with Disability Act (ADA) to businesses, agencies, and the public, as well as 

conducting ADA-related research Presently, ten ADA regional centers and one ADA knowledge translation Center are funded under this program. 

Advanced Rehabilitation Research Training Projects

The Advanced Rehabilitation Research Training (ARRT) Program provides research training and experience at an advanced level to individuals with doctorates, or similar advanced degrees, who have clinical 

or other relevant experience. ARRT projects train rehabilitation researchers, including researchers with 

disabilities, with particular attention to research areas that support the implementation and objectives of 

the Rehabilitation Act of 1973, as amended (Act), and that improve the effectiveness of services authorized under the Act.

Grants are made to institutions to recruit qualified persons, and to provide a training program that includes didactic and classroom instruction, is multidisciplinary, emphasizes scientific research methodology, and may involve collaboration among institutions
NIDRR Program Directory FY 2012 - Introduction

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Disability and Rehabilitation Research Projects

The Disability and Rehabilitation Research Projects (DRRP) program funds projects that include a range 

of activities including research, demonstration, training, knowledge translation, and technical assistance. 

These projects may develop methods, procedures, and rehabilitation technology to assist in achieving the 

full inclusion and integration into society, employment, independent living, family support, and economic and social self-sufficiency of individuals with disabilities, especially individuals with the most significant disabilities, or to improve the effectiveness of services authorized under the Rehabilitation Act.

Mary E. Switzer Research Fellowships

Research Fellowships, named for the late Mary E. Switzer, give individual researchers the opportunity to 

develop new ideas and gain research experience. There are two levels of fellowships: Distinguished Fellowships and Merit Fellowships. Distinguished Fellowships go to individuals who have seven or more 

years of research experience in subject areas, methods, or techniques relevant to rehabilitation research 

and must have a doctorate, other terminal degree, or comparable academic qualifications. Merit Fellowships are given to individuals who have either advanced professional training or independent study 

experience in an area that is directly pertinent to disability and rehabilitation but who do not meet the 

qualifications for Distinguished, usually because they are in earlier stages of their careers. The fellowship supports one year of independent research activities.

Model Systems

NIDRR administers programs that have become world-renowned model systems of care for persons 

with spinal cord injuries, burns, and traumatic brain injuries. The Model Systems establish innovative 

projects for the delivery, demonstration, and evaluation of comprehensive medical, vocational, and 

other rehabilitation services. The work of the Model Systems begins at the point of injury and ends 

with successful re-entry into full community life. These projects collect and contribute data on patient 

characteristics, diagnoses, causes of injury, interventions, outcomes, and costs to a uniform national 

database; conduct research, both independently and collaboratively with other Model System centers; 

and coordinate research efforts with other related grant recipients. Beginning in 2006, NIDRR funded a 

Model Systems Knowledge Translation Center (MSKTC) to support knowledge translation activities of 

all three Model Systems.

NIDRR Contracts

Through its contracts, NIDRR seeks improved methods, systems, products, and practices to enhance its 

work. The contracts are for specific activities related to management, research, and information dissemination.

Rehabilitation Engineering Research Centers

Rehabilitation Engineering Research Centers (RERCs) conduct programs of advanced research of an 

engineering or technical nature designed to apply advanced technology, scientific achievement, and 

psychological and social knowledge to solve rehabilitation problems and remove environmental barriers. 

Each center is affiliated with one or more institutions of higher education or nonprofit organizations. Involved at both the individual and systems levels, RERCs seek to find and evaluate the newest technolo-
NIDRR Program Directory FY 2012 - Introduction

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gies, products, and methods that ultimately can benefit the independence of persons with disabilities and 

the universal design of environments for all people of all ages. The centers also exchange technical and 

engineering information worldwide and engage in technology transfer activities to maximize the use of 

new technology in producing end-user products, both commercialized and non-commercialized, that are 

readily available for public consumption. Since 2008, NDRR has funded the Knowledge Translation for 

Technology Transfer (KT4TT) Center to assist RERC grantees in their technology transfer efforts.

Rehabilitation Research and Training Centers

NIDRR’s Rehabilitation Research and Training Centers (RRTCs) conduct coordinated and integrated 

advanced programs of research targeted toward the production of new knowledge, which may improve 

rehabilitation methodology and service delivery systems, alleviate or stabilize disabling conditions, or 

promote maximum social and economic independence for persons with disabilities. Operated in collaboration with institutions of higher education or providers of rehabilitation or other appropriate services, RRTCs serve as centers of national excellence in rehabilitation research. Also, they are national 

or regional resources for research information for individuals with disabilities and the parents, family 

members, guardians, advocates, or authorized representatives of the individuals. These centers also conduct related training programs, including graduate, pre-service and in-service training. The centers also 

disseminate and promote the utilization of research findings. 

Small Business Innovation Research

Small Business Innovation Research (SBIR) grants help support the production of new assistive and rehabilitation technology. This two-phase program takes a product from development to market readiness.

NARIC and the NIDRR Program Directory

The Program Directory is compiled by the National Rehabilitation Information Center (NARIC). 

NARIC functions as a specialized library, providing the public with disability- and rehabilitation-related 

information and services to help locate those materials and resources. Since 1977, NARIC has been the 

primary source of rehabilitation and disability information about and information generated by NIDRRfunded projects.

NARIC also produces REHABDATA, an index of disability and rehabilitation literature produced by NIDRR grantees as well as commercial publishers. Grantees submit copies of NIDRR-supported research 

products to NARIC and they are added to the reference collection and REHABDATA database. Information about holdings is available online at www.naric.com.

Neither NARIC nor NIDRR assumes liability for the Directory’s contents or the use thereof. NARIC 

does not evaluate or certify the programs or products of the organizations listed in the Directory.

This Directory is not intended for use as a fiscal document to show how NIDRR funds are allocated; its 

purpose is to display the range of programs that NIDRR supports. This listing is current as of December 

21st, 2012. This directory may include projects that have passed the indicated end or extension date.

NARIC operates under U.S. Department of Education contract ED-OSE-10-0074.
Contents

Rehabilitation Research and Training Centers (RRTCs) ......................................................................3

Disability and Rehabilitation Research Projects .................................................................................14

Field Initiated Projects (FIPs) .............................................................................................................25

Employment Outcomes

NIDRR’s employment research focuses on the lifelong challenges to and opportunities 

presented by transitions in employment experienced by people with disabilities. Employment research addresses methods to integrate the unique needs of employers and 

disability populations to improve employment outcomes across the life span. NIDRR’s 

research agenda in the area of employment is designed to strengthen the scientific basis 

of disability and rehabilitation-related research and practice by increasing the availability 

of validated theories, measures and methods to: (1) improve measurement, data sources, 

and estimates; and (2) enhance identification, evaluation, and prediction of the factors 

that facilitate successful labor force participation and work-related transitions across the 

life span. This research agenda is also designed to strengthen the scientific basis of disability-related employment policy, practice, and research by providing valid and reliable 

information and analyses designed to: (1) improve understanding of employment trends; 

individual labor force participation; and school-to-work transitions; and (2) enhance 

knowledge of the broader societal developments that affect employment opportunities 

and outcomes across the life span.

NIDRR Program Directory FY 2012 - Employment Outcomes

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Rehabilitation Research and Training Centers (RRTCs) 

Massachusetts 

Rehabilitation Research and Training Center on Vocational Rehabilitation Research 

University of Massachusetts Boston 

The Institute for Community Inclusion 

100 Morrissey Boulevard 

Boston, MA 02125-3393 

susan.foley@umb.edu 

www.vr-rrtc.org 

Principal Investigator: Susan Foley, PhD 

Public Contact: 617/287-4317

Project Number: H133B070001 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: Phillip Beatty, PhD 

NIDRR Funding: FY 07 $649,999; FY 08 $649,999; FY 09 $650,000; FY 10 $650,000; FY 11 

$650,000; FY 12 (No-cost extension through 09/30/2013)

Other Funding: FY 10 $150,000 Supplemental from NIDRR

Abstract: The Rehabilitation Research and Training Center (RRTC) on Vocational Rehabilitation 

Research provides a comprehensive description of the vocational rehabilitation (VR) program, collects 

best practices, and addresses the need for information to assist administrators, researchers, and advocates 

in making data driven policy and practice decisions. It conducts systematic research literature reviews, 

modeled after the Evidence for Policy and Practice Information and Coordinating Centre in the United 

Kingdom, that provide a comprehensive platform for research activities of the RRTC and for other researchers and policy-makers. Project activities include: (1) collecting descriptive data from a wide range 

of sources including existing administrative datasets and official documents; (2) launching the RRTC 

survey of state VR agencies, state mental retardation/developmental disabilities agencies, state mental 

health agencies, state welfare agencies, and community rehabilitation providers to develop state-by-state 

profiles of employment services and the context of VR service delivery; (3) interviewing directors of all 

80 VR agencies to collect descriptive information about key characteristics related to operational and 

programmatic decisions, policies, and practices; (4) using the Delphi Method to identify, evaluate, and 

describe best practices in the implementation of (a) Order of Selection policies and the prioritization of 

individuals with the most significant disabilities for VR services, (b) employment services for individuals with developmental disabilities, and (c) employment services for individuals with mental illnesses; 

(5) instituting a training and technical assistance agenda that uses community-of-practice mechanisms 

to create interactive, participant-driven opportunities for translation, information sharing, and policy 

development; and (6) disseminating products, curricula, and knowledge throughout the VR and employment services system, and to a wide array of disability and advocacy organizations. A supplemental 

project investigates the nature of post closure supported employment and extended employment services 

through surveys and case studies. Additionally, this project develops a knowledge-base on VR which is 

beneficial to policy and practice at the federal, state, and local levels, encouraging data-based decisionmaking, and resulting in the development of a research base that future investigators can use to analyze 
NIDRR Program Directory FY 2012 - Employment Outcomes

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the consequences and outcomes of variations in the internal arrangements and operations of state VR 

agencies, document best practices in detail, identify their key features, and investigate their transferability into other contexts. The RRTC Vocational Rehabilitation Research is a partnership of the Institute for 

Community Inclusion at the University of Massachusetts Boston, the Center for the Study and Advancement of Disability Policy, and InfoUse. 
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Rehabilitation Research and Training Centers (RRTCs) 

Massachusetts 

Improved Employment Outcomes for Individuals with Psychiatric Disabilities 

Boston University 

Center for Psychiatric Rehabilitation 

940 Commonwealth Avenue West 

Boston, MA 02215-1203 

mfarkas@bu.edu; erogers@bu.edu 

www.bu.edu/cpr/research/ongoing/rtc2014/index.html 

Principal Investigator: Marianne Farkas, ScD; E. Sally Rogers, ScD 

Public Contact: Marianne Farkas, ScD 617/353-3549; Fax: 617/353-7700 

Project Number: H133B090014 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 09 $849,535; FY 10 $850,000; FY 11 $847,289; FY 12 $850,000; FY 13 

$848,218

Abstract: This project develops and tests innovative interventions, identifies barriers to and facilitators 

of effective partnerships among providers of employment services, and develops and tests adaptations of 

evidence-based employment interventions for individuals with psychiatric disabilities from traditionally 

underserved groups. Additionally, this project incorporates research findings into practice and policy by 

developing, evaluating, and implementing strategies to increase utilization of research findings; and conducts training, technical assistance, and dissemination activities (TDTA) with the same purpose. TDTA 

projects are organized into programmatic areas which together focus on the development and implementation of practices and services to improve employment outcomes. Using the knowledge transfer framework, TDTA projects produce usable, new technologies for improving employment outcomes. 
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Rehabilitation Research and Training Centers (RRTCs) 

Massachusetts 

Vocational Rehabilitation and Developing Strategies to Meet Employer Needs in Changing 

Economic Environments 

University of Massachusetts Boston 

The Institute for Community Inclusion 

100 Morrissey Boulevard 

Boston, MA 02125-3393 

susan.foley@umb.edu 

Principal Investigator: Susan Foley, PhD 

Public Contact: 617/287-4317

Project Number: H133B120002 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 12 $650,000; FY 13 $650,000; FY 14 $650,000; FY 15 $650,000; FY 16 

$650,000

Abstract: This center produces strategies for assessing employer needs and expectations, develops strategic planning models that support state vocational rehabilitation (VR) agency efforts to anticipate and 

prepare for changing employer and labor market needs, identifies existing programs that may be useful 

to VR agencies, and produces methods for tracking, analyzing and reacting to changing employer needs. 

Research, training, technical assistance, and dissemination activities build upon current knowledge of 

demand-side strategies and fill a knowledge gap on agency-level practices to address three main themes 

in improving VR responsiveness to employer needs: (1) integrating labor market and business relations 

data into business intelligence and strategic planning efforts in Alabama; (2) aligning just-in-time job 

training with industry needs to ameliorate middle skill labor shortages in Nebraska; and (3) testing an 

emerging and piloted model in four state VR agencies of “no-risk, low risk” dual customer job placement services created in Vermont. This project is a partnership with The Institute for Community Inclusion at the University of Massachusetts Boston, the Alabama Department of Rehabilitation Services, the 

Nebraska Vocational Rehabilitation, the Vermont Division of Vocational Rehabilitation, and the New 

England Council. 
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Rehabilitation Research and Training Centers (RRTCs) 

Massachusetts 

Learning and Working During the Transition to Adulthood 

University of Massachusetts Medical School 

CMHSR/Department of Psychiatry 

UMMS 55 Lake Avenue 

Worcester, MA 01655 

maryann.davis@umassmed.edu 

labs.umassmed.edu/transitionsRTC 

Principal Investigator: Maryann Davis, PhD 

Public Contact: 508/856-8718; Fax: 508/856-8700 

Project Number: H133B090018 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 09 $800,398; FY 10 $800,398; FY 11 $800,392; FY 12 $800,380; FY 13 

$800,388

Abstract: This project focuses on school-to-work transitions and develops an integrated research program examining this developmental stage for transition age youth and young adults with serious mental 

health conditions. The Learning and Working During the Transition to Adulthood Rehabilitation Research and Training Center provides national leadership in this area and shares developing knowledge 

with key stakeholders including youth and young adults, their families, researchers, policymakers, and 

practitioners. The transition to adulthood is a critical life stage when the learning that occurs, both in 

school and in the larger world, lays an important foundation for individuals’ future work life. Serious 

psychiatric disability issues can disrupt the school-to-work pathway and contribute to school dropout, 

psychiatric hospitalization, homelessness, and jail. The Center develops and translates knowledge from 

state-of-the-art rigorous research on education and work experiences for 14-30 year olds. The research 

is informed by consumer and family input and is carried out in real-world settings. This project contributes to new knowledge about interventions for this population who are often from disadvantaged backgrounds, and improves coordination between child and adult mental health services. The translation of 

this knowledge speeds capacity building for service providers and the movement of findings into practice and policy. 
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Rehabilitation Research and Training Centers (RRTCs) 

Mississippi 

RRTC on Employment Outcomes for Individuals Who Are Blind or Visually Impaired 

Mississippi State University 

The National Research and Training Center on Blindness & Low Vision 

PO Box 6189

108 Herbert South, Room 150

IED Building 

Mississippi State, MS 39762 

MCapella@colled.msstate.edu 

www.blind.msstate.edu 

Principal Investigator: Michele Capella McDonnall, PhD; Brenda Cavenaugh, PhD; Adele Crudden; 

Marty Giesen; B.J. LeJeune

Public Contact: Michele Capella McDonnall, PhD 662/325-2001

Project Number: H133B100022 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 10 $850,000; FY 11 $850,000; FY 12 $850,000; FY 13 $850,000; FY 14 

$850,000

Abstract: The overall purpose of this project is to improve competitive employment outcomes for persons who are blind or visually impaired (B/VI). Project 1 involves developing, implementing, and evaluating a customized transportation intervention through a state-federal vocational rehabilitation agency. 

Project 2 involves modifying an existing business mentoring program for college seniors. Project 3 

evaluates existing practices used by vocational rehabilitation (VR) agencies to interact with employers, 

with a focus on their use of the model of business development. Project 4 involves an evaluation of the 

Randolph-Sheppard Program that includes evaluating managerial skills, training needs, and recruitment 

strategies. Project 5 evaluates the VR service delivery process and outcomes for B/VI consumers who 

are SSDI beneficiaries. Project 6 involves evaluating the accessibility and usability of two important 

workplace devices that have known accessibility issues for persons who are B/VI: multifunctional document centers and business internet telephone systems. Training, technical assistance, and dissemination 

activities flow from the results of the six research projects and include a State of the Science conference 

held in Year Four. A large number of outputs and outcomes emanate from this project. Example of outputs are a minimum of 13 peer-reviewed publications, 18 conference presentations, 2 intervention manuals, 2 evidence-based practice guidelines, and 7 training webinars. Important overall project outcomes 

resulting from these outputs include increased knowledge about the effectiveness of existing practices 

and new interventions, utilization of research findings in the development of rehabilitation practices and 

policies, and improved employment outcomes for persons who are B/VI. 
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Rehabilitation Research and Training Centers (RRTCs) 

Montana 

Rehabilitation Research and Training Center on Disability in Rural Communities 

University of Montana 

The University of Montana Rural Institute: A Center for Excellence in Disability Research, Education 

and Services 

52 Corbin Hall 

Missoula, MT 59812-7056 

rural@ruralinstitute.umt.edu 

rtc.ruralinstitute.umt.edu 

Principal Investigator: Tom Seekins, PhD 406/243-2654 

Public Contact: Nancy Arnold 888/268-2743 (V); 406/243-5467 (V); 406/243-4200 (TTY); Fax: 

406/243-2349 

Project Number: H133B080023 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Joyce Y. Caldwell 

NIDRR Funding: FY 08 $850,000; FY 09 $850,000; FY 10 $850,000; FY 11 $850,000; FY 12 

$850,000

Abstract: The Research and Training Center on Disability in Rural Communities (RTC:Rural) at the 

University of Montana conducts research that advances a science of rural disability and rehabilitation, 

improves the health of rural Americans with disabilities, and increases their opportunities for employment and community integration. The research and training program provides contextually appropriate, 

evidence-based solutions that rely on resources available in most rural communities, while respecting their diversity and values. The project: (1) conducts detailed statistical analyses of state vocational 

rehabilitation (VR) data to identify promising, evidence-based rural service practices; (2) develops and 

evaluates telecommunications protocol for providing rural VR services; (3) conducts a longitudinal 

study to determine why rural VR clients might exit services prematurely, and to evaluate retention strategies; (4) evaluates rural health promotion strategies that could lead to improved employment outcomes; 

(5) conducts a randomized controlled trial to evaluate ways to improve rural consumers’ use of health 

care services; (6) conducts a randomized controlled trial to evaluate a mental health peer support model 

for rural individuals with mobility or sensory impairments; and (7) identifies strategies to improve rural 

transportation. The knowledge translation program disseminates research findings and sparks the use of 

evidence-based rural practices by policy makers, advocates, service providers, and persons with disabilities. The project web site, which is a central component of the dissemination program, includes 

the first rural disability “wiki,” building a rural disability knowledge base. The project includes three 

focused training initiatives: (1) promoting economic development in rural southwest Texas; (2) facilitating linkages between Utah Small Business Development Centers and VR services; and (3) implementing 

the Living Well with a Disability health promotion program in rural South Carolina. The project also 

includes an innovative, web-based state-of-the-science conference on rural disability and rehabilitation. 
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Rehabilitation Research and Training Centers (RRTCs) 

New Hampshire 

RRTC on Employment Policy and Measurement 

University of New Hampshire 

Whittemore School of Business and Economics 

15 Academic Way, McConnell Hall 

Durham, NH 03824 

andrew.houtenville@unh.edu 

www.iod.unh.edu/Projects/epm_rrtc/project_description.aspx 

Principal Investigator: Andrew J. Houtenville, PhD 

Public Contact: 603/862-4004

Project Number: H133B100030 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 10 $850,000; FY 11 $850,000; FY 12 $850,000; FY 13 $850,000; FY 14 

$850,000

Abstract: This project investigates the impact of government policies and programs on employment, 

with particular attention to the effects of program interactions; examines new ways of measuring employment outcome; and facilitates the translation of research findings into policymaking and program 

administration. The project includes a comprehensive set of 13 research projects, focusing on interactions among government programs and employment measurement. These projects utilize cross-sectional 

and longitudinal data derived from several sources: national surveys, program administrative records, 

administrative records linked across programs; and/or surveys linked to administrative records. The 

researchers at the Rehabilitation Research Training Center on Employment Policy and Measurement are 

conducting an integrated set of knowledge translation projects designed to convey research findings to 

key stakeholders and work with these stakeholders to develop research-to-policy implementation strategies. 
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Rehabilitation Research and Training Centers (RRTCs) 

New Jersey 

Rehabilitation Research and Training Center: Individual-Level Characteristics Related to 

Employment Among Individuals with Disabilities 

Kessler Foundation 

Kessler Foundation Research Center 

300 Executive Drive, Suite 70 

West Orange, NJ 07052 

joneil@kesslerfoundation.org 

www.researchondisability.org/ic-rrtc 

Principal Investigator: John O’Neill, PhD; Purvi Sevak, PhD

Public Contact: 973/324-8387; Fax: 973/324-8373 

Project Number: H133B120005 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 12 $850,000; FY 13 $850,000; FY 14 $850,000

Abstract: This RRTC generates new knowledge regarding the economic disparities of individuals with 

disabilities and the role of individual characteristics, building upon evidence-based research that improves strategies and interventions for attaining better employment outcomes for the various subpopulations of people with disabilities. This project blends the social model of disability with labor economic 

theory, adopting the framework of the International Classification of Functioning, Disability and Health 

focusing on three research domains: health conditions, personal characteristics, and environmental characteristics. The first domain, health conditions, researches the physical and mental characteristics that 

underlie disability. The second domain researches personal characteristics including demographic characteristics, human capital (education and training), and social capital (an individual’s family, community, 

and employment relationships). The third domain researches environmental characteristics including 

accessibility, transportation, the local economy, public policies, and geography. This project conducts 

research in three phases: Phase 1 - reviewing existing literature and providing comprehensive review of 

the vocational rehabilitation and social science literature on facilitators and barriers to employment for 

persons with disabilities; Phase 2 - utilizing existing data from Phase 1 and data from disability-related 

public programs and national and international surveys to examine the geographic and individual variation within the data supporting identification of individual, social, economic, and environmental barriers 

and facilitators to employment; and Phase 3 - applying new data to design, implement, and analyze the 

National Survey on Disability and Employment. 
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Rehabilitation Research and Training Centers (RRTCs) 

New York 

Cornell RRTC on Employer Practices Related to Employment Outcomes Among Individuals with 

Disabilities 

Cornell University 

Employment and Disability Institute; School of Industrial and Labor Relations 

201 ILR Extension Building 

Ithaca, NY 14853-3901 

smb23@cornell.edu 

Principal Investigator: Susanne M. Bruyère, PhD 

Public Contact: 607/255-9536 (V); 607/255-2891 (TTY); Fax: 607/255-2763 

Project Number: H133B100017 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 10 $800,000; FY 11 $800,000; FY 12 $800,000; FY 13 $800,000; FY 14 

$800,000

Abstract: This RRTC (1) creates new knowledge of specific employer practices most strongly associated with desired employment outcomes for individuals with disabilities and the prevalence of these practices; (2) increases knowledge about how these practices relate to employer success in hiring, retention, 

and promotion of individuals with disabilities; and (3) increases the incorporation of these findings into 

practice and policy by collaborating with employer groups to develop, evaluate, or implement strategies 

to promote utilization of positive practices as identified by the project. Project goals are reached through 

a series of 13 research and 14 outreach projects. Specifically, rigorous research is conducted using (1) 

national survey and administrative data sets with employer variables; (2) focus groups and network-wide 

surveys with partner employer member organizations; (3) in-depth employer case studies in at least one 

private and one public employer workplace to identify barriers to best practices implementation, as well 

as practices that cultivate inclusive climates for people with disabilities; and finally, (4) designing and 

testing an online employer best practices benchmarking tool based on research results. Through research 

and outreach projects, this project expands the availability and accessibility of useful information on 

how employer practices are related to employer success in hiring, retaining, and advancing people with 

disabilities. 
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Rehabilitation Research and Training Centers (RRTCs) 

Wisconsin 

Creating Evidence-Based Vocational Rehabilitation Service Delivery Practices 

The Board of Regents of the University of Wisconsin System 

Rehabilitation Psychology and Special Education 

1000 Bascom Mall, Room 403 

Madison, WI 53706 

chan@education.wisc.edu 

Principal Investigator: Fong Chan, PhD; John Lui, PhD

Public Contact: 608/262-2137

Project Number: H133B100034 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 10 $942,082; FY 11 $918,828; FY 12 $935,201; FY 13 $929,632; FY 14 

$939,710

Abstract: This project generates new knowledge related to theory-driven, evidence-based vocational 

rehabilitation (VR) practice to improve the effectiveness of VR service delivery practice generally and 

to improve employment outcomes of subpopulations of VR customers with the lowest outcomes. The 

project includes three research phases. During the first phase, RSA-911 and related data are analyzed to 

examine organizational level variables (e.g., state unemployment rates) and individual level data (e.g., 

race and disability type) to determine personal and environmental interactions and their associations 

with quality of employment outcomes using multi-level analysis. The second phase includes in-depth 

case study of two exemplary VR agencies, comparing them with other VR agencies to identify promising practices. In the third phase, new data fill gaps identified in Phase 1 and 2 through collection of new 

data. Major Phase 3 projects include validating the International Classification of Functioning, Disability, and Health as a VR model, testing a motivational enhancement model for VR, evaluating the effectiveness of a motivational interviewing intervention, and conducting a controlled study on a counselors’ 

toolkit for incorporating evidence-based VR practices. In addition, Phase 3 includes a national survey to 

determine readiness of state VR to incorporate evidence-based interventions in service delivery practice. 
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Disability and Rehabilitation Research Projects 

Georgia 

DRRP on Universal Design Practices to Enhance Work Outcomes 

Georgia Institute of Technology 

Center for Assistive Technology and Environmental Access (CATEA) 

490 Tenth Street, NW 

Atlanta, GA 30318 

jon.sanford@coa.gatech.edu 

Principal Investigator: Jon Sanford 

Public Contact: 404/894-1413; Fax: 404/894-9320 

Project Number: H133A120120 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 12 $499,962; FY 13 $499,875; FY 14 $499,928; FY 15 $499,972; FY 16 

$499,954

Abstract: The goal of this project is to increase knowledge about, availability of, and access to universal 

design (UD) accommodations to enable employees with disabilities to participate fully in the workplace, 

enjoy enhanced employment outcomes, and have equal opportunities for advancement. To accomplish 

this goal, the specific aims of the research activities are to develop new tools to measure UD accommodation practices and workplace participation; utilize these tools to establish an evidence base for UD 

accommodations to improve work outcomes; and translate that evidence into practice. To accomplish 

these aims, the project: (1) develops and validates the Workplace Accommodation Rating System and 

Standards (WARSS), a set of standards and a new rating system for UD accommodations based on the 

Commercial Building Standards developed by IDEA Center for the Global Universal Design; (2) expands the scope of the Work RERC Workplace Participation Survey, originally developed and validated 

for workers who use wheelchairs in an office setting, to include workers with all types of limitations, 

including vision, hearing, mobility, dexterity, speech, and cognition in multiple work settings; (3) describes the relationship between employer accommodation practices and work outcomes; (4) identifies 

the salient UD accommodation practices that are associated with positive work outcomes for employees 

with disabilities; and (5) identifies needs and opportunities to develop and disseminate materials about 

accommodation policies and practices. The DRRP produces new tools for employers and rehabilitation 

professionals to measure UD and participation in a workplace, including the WARSS to be submitted 

for adoption by the Global Universal Design Commission; an evidence base for UD accommodation 

practices; and educational and outreach materials in formats that are useful to and usable by employers, industry organizations, rehabilitation professionals, policymakers, and organizations that influence 

policy including employer practice guidelines, articles in industry trade journals, and evidence-based 

policy recommendations for policymakers. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Disability and Rehabilitation Research Projects 

Maryland 

Center for Transition to Employment for Youth with Disabilities 

TransCen, Inc. 

451 Hungerford Drive, Suite 700 

Rockville, MD 20850-4151 

rluecking@transcen.org 

www.transcen.org/index.php?option=com_content&view=article&id= 209:newsdrpp&catid=1:latestnews 

Principal Investigator: Richard G. Luecking, PhD; Paul Wehman, PhD

Public Contact: 301/424-2002, ext. 230

Project Number: H133A100007 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 10 $649,999; FY 11 $649,999; FY 12 $649,999; FY 13 $649,999; FY 14 

$649,999

Abstract: This center provides a comprehensive, balanced, and rigorous view of the strategies, methodologies, and models of transition to employment for youth with disabilities contributing to ongoing 

analysis, policy development, and in-the-field practice for transition-to-employment services. Project 

activities include: (1) conducting a systematic review of promising practices for transitioning students 

with disabilities to employment; (2) conducting a risk modeling of the National Longitudinal Transition Study and developing a prediction model for successful transition to employment; (3) analyzing 

data from a standardized transition-to-employment program serving primarily minority urban youth to 

identify factors explaining work outcomes, and to identify demographic and service characteristics that 

predict employment success; (4) identifying characteristics and perceptions of staff of a standardized 

national program serving primarily minority youth with disabilities that explain employment outcomes; 

(5) identifying factors that enable schools to effectively serve youth with intellectual and developmental 

disabilities preparing for and transitioning to on-going supported employment service; (6) implementing 

and studying a transition service model and applying this model across school districts and across categories of youth that features paid work, early vocational rehabilitation case initiation, and multi-party 

collaboration prior to school exit; (7) producing publications of research findings; and (8) compiling, 

creating, and disseminating training and technical assistance materials based on the center’s research in 

order to address gaps in knowledge and practice. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Disability and Rehabilitation Research Projects 

Massachusetts 

Research and Technical Assistance Center on Vocational Rehabilitation Program Management 

University of Massachusetts Boston 

The Institute for Community Inclusion 

100 Morrissey Boulevard 

Boston, MA 02125-3393 

ici@umb.edu 

www.vr-rtac.org/ 

Principal Investigator: William E. Kiernan, PhD 617/287-4311 

Public Contact: 617/287-4300; Fax: 617/287-4352 

Project Number: H133A090002 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 09 $1,500,000; FY 10 $1,500,000; FY 11 $1,500,000; FY 12 $1,500,000; FY 13 

$1,500,000

Abstract: This Center uses a three-stage process to develop and test a Vocational Rehabilitation (VR) 

Program Management Model. In the model development stage, project staff conduct research activities 

that build on existing management models, integrate knowledge generated from other public systems 

and the private sector, and review evidence indicating associations between management practices and 

organizational outcomes. In the second stage, model verification and transfer, staff coordinate three 

research projects that emphasize the collection and evaluation of knowledge generated directly by the 

VR program, translate findings from the development phase into actionable management strategies, and 

finalize the VR Program Management Model. In the third stage, the management practices laboratory, 

the VR Program Management Model, its implementation, and validation are studied at seven partnering 

state VR agencies. An Advisory Committee ensures the VR Program Management Model is technically 

sound, relevant, and functional for the VR system. Training and technical assistance (TA) activities are 

integrated into the research agenda and designed for replication and distribution by the VR TA Network. 

Tools developed by the Center promote effective and efficient VR management practices leading to improved organizational performance and high quality employment outcomes for people with disabilities. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Disability and Rehabilitation Research Projects 

New Hampshire 

Development Center to Enhance Evidence-Based Supportive Employment with a TechnologyBased Management System 

Trustees of Dartmouth College 

Dartmouth Psychiatric Research Center 

Rivermill Commercial Center, Suite B4-1 

Lebanon, NH 03766 

sarah.e.lord@dartmouth.edu 

Principal Investigator: Sarah E. Lord, PhD 

Public Contact: 603/448-0263

Project Number: H133A120164 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 12 $496,422; FY 13 $499,576; FY 14 $499,107; FY 15 $499,412; FY 16 

$498,886

Abstract: This project develops a range of technology-based products as part of an overall platform, 

called the Individual Placement and Support (IPS) Management System, to enhance the availability, 

consumer-centeredness, service quality, expansion, effectiveness, and efficiency of vocational services 

for people with serious mental illness on a national scale. The IPS model of supported employment is 

firmly established as the most effective practice to help people with serious mental illness become employed and succeed as steady workers. The IPS Management System builds on existing technology and 

evidence-based components that are not yet computerized. It includes a variety of tools to help consumers, families, vocational rehabilitation counselors, employers, employment specialists, mental health 

teams, supervisors, and administrators. The tools are iteratively developed and tested for acceptability 

and usability, using methods that have been empirically proven in the development of treatment technology. Examples of these tools include: consumer-empowering software to enable consumers to build their 

own career profiles and job plans; information on disability benefits and employment for families; IPS 

training for Vocational Rehabilitation counselors; information for employers on the advantages of hiring 

IPS participants; job development tracking systems for employment specialists; IPS training for mental 

health teams; and management systems for supervisors and administrators. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Disability and Rehabilitation Research Projects 

New Jersey 

Manual and Training Program to Promote Career Development Among Transition Age Youth and 

Young Adults with Psychiatric Conditions 

University of Medicine and Dentistry of New Jersey 

Department of Psychiatric Rehabilitation and Counseling Services 

1776 Raritan Road, Room 313 

Scotch Plains, NJ 07076 

mullenmi@umdnj.edu 

Principal Investigator: Michelle Mullen-Gonzalez 

Public Contact: 908/889-2513; Fax: 908/889-2701 

Project Number: H133A120152 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 12 $499,880; FY 13 $499,954; FY 14 $499,145; FY 15 $499,951; FY 16 

$499,998

Abstract: This project develops, evaluates, and implements an innovative career development intervention, Helping Youth on the Path to Employment (HYPE), a manual and training program to integrate 

Supported Education (SEd) with Supported Employment (SE) and other vocational services in order 

to adequately support transition age youth and young adults (TAYYA) with psychiatric conditions in 

achieving self-sufficient lives. HYPE is a comprehensive, integrated career development intervention for 

TAYYA with psychiatric conditions that can be implemented across a variety of settings. A manualized 

model that is guided by a National Advisory Council (NAC) and Participatory Action Committee (PAC) 

consisting of young adults and youth with lived experiences is informed by the findings of four activities 

of the development program: (1) a scoping literature review; (2) an innovative practices survey; (3) qualitative interviews with TAYYA to learn about the practices that promote career development, obstacles 

commonly faced, and critical times for service delivery; and (4) activity synthesis and consensus conference where all activity findings will be integrated and vetted through the NAC and PAC in order to reach 

consensus agreement regarding the critical features of career development for TAYYA. The manual to 

be developed addresses strategies for meeting common challenges such as cognitive deficits, substance 

abuse, and legal involvement, as well as how to integrate SE and SEd interventions that specifically 

target TAYYA. The manual also features a training materials section to prepare staff in providing career 

development services for young adults and youth. This project is a collaboration of The UMDNJ Department of Psychiatric Rehabilitation and Counseling Professions and the University of Massachusetts 

Medical School Transitions Research and Training Center. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Disability and Rehabilitation Research Projects 

New York 

Demand-Side Employment Placement Models 

Syracuse University 

Burton Blatt Institute 

900 South Crouse Avenue; Crouse-Hinds Hall 300

Syracuse, NY 13244 

wmyhill@syr.edu 

bbi.syr.edu/projects/corpculture/demandside_empmodels.htm 

Principal Investigator: Peter D. Blanck, PhD, JD; Doug Kruse, PhD; Tanya M. Gallagher, PhD; D.J. 

Hendricks, EdD; 315/443-9703 (Blanck); 732/445-5991 (Kruse); 217/333-2131 (Gallagher); 

304/293-7186, ext. 111 (Hendricks) 

Public Contact: Wiliam N. Myhill, MEd, JD 315/443-1367; Fax: 315/443-9725 

Project Number: H133A060033 

Start Date: July 01, 2006 

Length: 60 months 

NIDRR Officer: Shelley Reeves 

NIDRR Funding: FY 06 $500,000; FY 07 $500,000; FY 08 $500,000; FY 09 $500,000; FY 10 

$500,000; FY 11 (No-cost extension through 07/31/12); FY 12 (No-cost extension through 04/30/13)

Abstract: This project sets out scientifically rigorous and evidence-based methods to develop, identify, 

and evaluate employment demand-side models. It translates the findings into valid and practical tools 

for large and small businesses in different market sectors to improve employment outcomes. It evaluates 

the relative efficacy of these tools alongside supply-side research outcomes. Americans with disabilities 

have significantly lower levels of employment than their peers without disabilities. Prior study of employment rates among people with disabilities generally has relied on a “supply-side” approach, analyzing how personal characteristics predict employment and earnings. These models have not sufficiently 

analyzed variables related to employer demand (and the interaction of employer demand/supply and the 

environment) as predictors of employment outcomes for people with disabilities. Thus, there is a need 

to systematically understand demand characteristics for qualified workers with disabilities, particularly 

as work requirements change over time. The project is a nationwide collaboration of economists, statisticians, and leading experts in law, public and disability policy, corporate culture, applied life studies, technology, and education as applied to disability employment policy and law. Project leadership 

includes disability scholars from universities around the country, with combined decades of research, 

training, and knowledge dissemination experience. The project builds fresh partnerships among disability policy and law experts, the business community, researchers, and national disability organizations such as the National Organization on Disability and the National Council on Independent Living. 

The project generates new knowledge to better understand market-driven workforce trends in large and 

small firms and different market sectors, and to inform employment practices to prepare individuals with 

disabilities for the present and future workforce. The project has a systematic plan and logic model for 

knowledge translation and dissemination aimed at providing employers best practice and practical tools 

to improve employment outcomes of people with disabilities. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Disability and Rehabilitation Research Projects 

New York 

Center on Effective Delivery of Rehabilitation Technology by Vocational Rehabilitation Agencies 

Syracuse University 

Burton Blatt Institute 

900 South Crouse Avenue; Crouse-Hinds Hall 300 

Syracuse, NY 13244 

bbi.syr.edu 

Principal Investigator: Peter D. Blanck, PhD, JD 315/443-9703 

Public Contact: Deepti Samant 202/296-5393; Fax: 202/296-2047 

Project Number: H133A090004 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: Shelley Reeves 

NIDRR Funding: FY 09 $499,630; FY 10 $499,455; FY 11 $499,601; FY 12 $499,492; FY 13 

$499,969

Abstract: This Center uses quantitative and qualitative research methods to identify and document 

indicators of effective rehabilitation technology (RT) service delivery. Effectiveness is defined by quality indicators incorporating variables of structure, policy, decision making processes, and costs related to 

outcomes and counselor and consumer satisfaction. The Center also analyzes supports necessary for effective RT delivery, including counselor education, assessment tools and measures, information management, consumer education, quality assurance mechanisms, and public and private sector relationships. 

Selection and analysis of “effective RT service delivery models” takes into account variances related to 

urban versus rural areas, different types of disabilities, and programs administered within and outside 

state vocational rehabilitation (VR) agencies. The Center’s research team conducts in-depth evaluation 

of six state VR programs and six outside programs. The goal of the Center is to develop a new validated 

instrument and system of measurement to improve RT service delivery and reduce RT non-use and poor 

employment outcomes. The tool is accompanied by an interactive training program for VR counselors 

to build knowledge of RT solutions and an improved assessment process, including a set of exemplars, 

tools, and guidance that VR agencies and other programs can use to improve RT service delivery. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Disability and Rehabilitation Research Projects 

South Carolina 

Successful Employment and Quality Work Life After Severe Disability Due to Spinal Cord Injury 

Medical University of South Carolina 

College of Health Professions

Department of Rehabilitation Sciences 

77 President Street, Suite 117

PO Box 250700

Charleston, SC 29425 

cokerj@musc.edu 

academicdepartments.musc.edu/chp/CHORCUP/index.htm; www.sciandtbiresearch.blogspot.com

Principal Investigator: James S. Krause, PhD 843/792-1337 

Public Contact: Jennifer Coker, MPH 843/792-7051; Fax: 843/792-5649 

Project Number: H133A120122 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 12 $499,805; FY 13 $499,412; FY 14 $498,646; FY 15 $499,195; FY 16 

$499,790

Abstract: The purpose of this project is to perform a state-of-the art study of employment after spinal 

cord injury (SCI), to identify factors related to successful employment throughout the life cycle. Research and service delivery models of employment after disability typically focus heavily on transition 

or return to work, rather than a focus on maintaining employment, advancing in career, and maximizing 

earning potential. This is a two-stage research study beginning with a qualitative component that elicits 

factors related to successful employment from the perspective of stakeholders with SCI, including those 

who have had highly successful careers. A large-scale, quantitative study, incorporating the qualitative findings and input from advisory panels is used to develop econometric models of participation in 

employment and quality employment outcomes throughout the work life cycle. The project includes an 

integrated program of dissemination, training, and technical assistance to ensure the new knowledge 

generated may be translated into policy and practice. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Disability and Rehabilitation Research Projects 

Texas 

SEDL’s Vocational Rehabilitation Service Models for Individuals with Autism Spectrum Disorders 

SEDL 

4700 Mueller Boulevard 

Austin, TX 78723 

john.westbrook@sedl.org 

www.autism.sedl.org 

Principal Investigator: John Westbrook, PhD 

Public Contact: 800/761-7874; Fax: 512/476-2286 

Project Number: H133A080007 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 08 $350,000; FY 09 $350,000; FY 10 $350,000; FY 11 $350,000; FY 12 

$350,000

Abstract: For this project, SEDL partners with the Center for Autism and Related Disabilities at the 

University of Central Florida (UCF CARD) to create a knowledge translation initiative to address the 

growing need for improvement in vocational rehabilitation (VR) and transition services for persons 

with autism spectrum disorders (ASDs). SEDL and UCF CARD conduct a multifaceted set of research 

activities to identify and document VR and transitional behavior management practices that are linked 

to employment successes for people with ASDs, to identify factors that are strongly predictive of such 

success, to study the activities and impact of a statewide VR service provider network, and to document 

examples of success among individuals with ASDs in long-term employment placements. Research activities include conducting two major systematic reviews, implementation of a rigorous process for identifying and validating VR best practices, a study of the university-based statewide network of CARD 

centers in Florida, and case studies of individuals with ASDs and their families. Additionally, this project 

develops and disseminates an array of information products to inform both policy and practice, and to 

support implementation of best practices in VR settings throughout the US with existing national VR, 

service provider, advocacy, and research networks. This project is guided by a national advisory panel 

comprised of representatives from NIDRR-funded research initiatives addressing ASDs, VR professionals, ASDs service providers, and people with ASDs and/or their family members. The project outcomes 

include new knowledge and understanding, and allow for on-the-ground changes within the VR system, 

increasing employment among persons with ASDs. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Disability and Rehabilitation Research Projects 

Virginia 

Vocational Rehabilitation Service Models for Individuals with Autism Spectrum Disorders (VCU 

ASC Career Links) 

Virginia Commonwealth University 

VCU ASD Career Links 

PO Box 842011 

Richmond, VA 23298 

tcblanke@vcu.edu 

www.vcu-autism.org 

Principal Investigator: Paul Wehman, PhD 

Public Contact: 804/828-1852 (V); 804/828-2494 (TTY); Fax: 804/828-2521 

Project Number: H133A080027 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 08 $350,000; FY 09 $350,000; FY 10 $350,000; FY 11 $350,000; FY 12 

$350,000

Abstract: VCU ASD Career Links conducts evidence-based research on vocational rehabilitation (VR) 

service models for individuals with autism spectrum disorders (ASDs). The project is based at Virginia 

Commonwealth University (VCU) and is a collaborative initiative between VCU and the Virginia Department of Rehabilitative Services (DRS). The scope of research covers four areas: (1) the impact of 

intensive, community-based work experiences on the employment outcomes of youth with ASDs; (2) 

the postsecondary school participation and ultimate employment of college students with ASDs; (3) the 

impact of personal digital assistants on the employment outcomes of individuals with ASDs; and (4) a 

longitudinal analysis of VR service delivery and employment outcomes among DRS clients with ASDs. 

While the primary target population is persons with ASDs, there is an emphasis on youth and young 

adults who are unemployed, under-employed, or under-served in postsecondary education. Additionally, this project targets persons from traditionally under-represented populations with diverse racial and 

ethnic backgrounds. This project works collaboratively with four local school districts in the Richmond 

area and the Faison School for Autism to enroll youth with ASDs into the project. The project also 

works with colleges and universities throughout the Commonwealth of Virginia. Dissemination activities include web casts, fact sheets, evidence-based journal articles, and a toolkit on how to enhance VR 

employment models for youth with ASDs. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Disability and Rehabilitation Research Projects 

Virginia 

Facilitating Employment for Youth with Autism: A Replication Study of an Internship Model to 

Identify Evidence Based Practices 

Virginia Commonwealth University 

VCU ASD Career Links 

PO Box 842011 

Richmond, VA 23298 

pwehman@vcu.edu 

Principal Investigator: Paul Wehman, PhD 

Public Contact: 804/828-1852

Project Number: H133A120140 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 12 $499,995; FY 13 $489,085; FY 14 $499,466; FY 15 $497,639; FY 16 

$497,639

Abstract: This project is designed to determine the efficacy of a nine-month hospital-based internship intervention for transitioning young adults with autism spectrum disorders (ASD). This internship 

program, based on the Project SEARCH model, is currently being tested and evaluated in a randomized 

clinical trial at two Bon Secours Hospitals in Richmond, Virginia. This project replicates this intervention in two new Virginia hospitals: one in Northern Virginia and one in the Norfolk area. The intervention consists of two components: (1) 900 hours of onsite training over 9 consecutive months at the host 

hospital site, and (2) training and support provided by employment specialists with expertise in autism, 

applied behavior analysis, supported employment, and business networking. Data collection focuses on 

a number of key measures when comparing the outcomes of the youth participating in the randomized 

clinical trials. First, did the young adults with ASD obtain and retain competitive employment? Second, 

did they earn a commensurate wage (at least minimum wages) and benefits? Third, how many hours 

per week were they employed? This project is a collaboration of Virginia Commonwealth University’s 

Department of Physical Medicine and Rehabilitation and the Virginia Department of Aging and Rehabilitative Services. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Field Initiated Projects (FIPs) 

Arkansas 

Beyond Hearing Aids: Training Resources to Improve the Capacity of VR Professionals Serving 

Consumers who are Hard of Hearing and Late Deafened 

University of Arkansas for Medical Sciences 

Department of Educational Development 

4301 West Markham, # 595 

Little Rock, AR 72205 

seboone@uams.edu 

Principal Investigator: Steven E. Boone, PhD 

Public Contact: 501/686-7348; Fax: 501/686-7348 

Project Number: H133G090170 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 09 $199,769; FY 10 $199,869; FY 11 $199,145; FY 12 (No-cost extension 

through 09/30/2013)

Abstract: This development project produces training resources designed to meet needs expressed by 

vocational rehabilitation (VR) professionals and consumers for increased knowledge and capacity to 

improve services to a growing population of 30.6 million persons with hearing loss. This project includes four steps: (1) empirically prioritize training content, (2) develop a web-based multimedia training resource, (3) field-test its efficacy, and (4) train and disseminate the resource to a workforce of over 

15,000 general and specialized counselors as well as approximately 1,100 annual graduates of over 85 

rehabilitation counselor training programs. The developed materials enhance the knowledge of general 

and specialized rehabilitation counselors who serve working-age consumers who are hard of hearing or 

late deafened. The project collaborates with the Council of State Administrators of Vocational Rehabilitation and content experts (VR providers, educators, consumers, and advocates) for the target population 

to produce and evaluate needed resources. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Field Initiated Projects (FIPs) 

Illinois 

Evaluating the Efficacy of an Occupational Intervention Targeting Young Adult Brain Tumor 

Survivors 

University of Illinois at Urbana-Champaign 

College of Applied Health Sciences

Department of Kinesiology and Community Health 

213a Huff Hall; MC-588

1203 South Fourth Street 

Champaign, IL 61820 

strauser@illinois.edu 

Principal Investigator: David Strauser, PhD; Stacia Wagner, MSW (Children’s Brain Tumor 

Foundation); Brad Zebrack, PhD (University of Michigan)

Public Contact: David Strauser, PhD 217/244-3936; Fax: 217/333-2766 

Project Number: H133G110289 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 11 $162,659; FY 12 $200,000; FY 13 $196,441

Abstract: The goal of this project is to evaluate the efficacy of an occupational development and work 

adjustment program for young adult brain tumor survivors to increase their participation in educational, 

vocational, or occupational settings; their social involvement and community integration; and overall 

psychological functioning. This project implements a state of the art, theoretically-grounded occupational development and work adjustment program through the Children’s Brain Tumor Foundation (CBTF) 

in New York City. CBTF offers patient education and supportive care services to over 1,000 brain tumor 

survivors and their families annually. Although the program is implemented at CBTF, the State/Federal 

Vocational Rehabilitation program is a collaborative partner with the program both through the service 

delivery process and advisory committee. In order to examine the sustained impact of the intervention, 

the program and outcomes of interest are evaluated at 6, 12, and 18 months. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Field Initiated Projects (FIPs) 

Illinois 

A Supported Employment Program for People with HIV/AIDS 

Chicago House and Social Service Agency 

iFOUR Employment Program 

1925 North Clybourn Avenue, Suite 401 

Chicago, IL 60614 

www.chicagohouse.org 

Principal Investigator: Lisa A. Razzano, PhD, CPRP; Stan Sloan, CEO; 312/413-0323 

Public Contact: Judy Perloff, LCSW 773/248-5200

Project Number: H133G110108 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 11 $198,849; FY 12 $199,393; FY 13 $199,365

Abstract: Chicago House and Social Service Agency and the Center on Mental Health Services Research and Policy (CMHSRP) at the University of Illinois at Chicago (UIC) are collaborating to assist 

people with HIV infection in living healthier, more productive lives within the community. Through the 

Increasing Income and Individual Independence (iFOUR) Program, individuals in recovery from HIV/

AIDS throughout the City of Chicago have the opportunity to participate in an evidence-based, supported employment program specifically designed and adapted for people with HIV/AIDS. iFOUR is an innovative program built on a multi-faceted curriculum designed to assist people with HIV/AIDS to return 

to work, maintain employment, and receive the on-the-job supports and reasonable accommodations as 

needed. The iFOUR Program includes several distinct components focused on rapid job placement, job 

training and finding services, career counseling, and paid-internship opportunities. These components 

have been adapted from models of supported employment with demonstrated effectiveness and efficacy. 

The iFOUR intervention consists of a comprehensive, intense four-week employment workshop plus 

one-on-one meetings with the Career Specialist and a Peer Employment Specialist on personal employment goals and interests. The intervention also tailors one-session each week to issues specific to recovery and community reintegration among individuals with HIV/AIDS, including health issues, medication adherence, disclosure and workplace accommodations, and benefits planning. For the comparison 

condition, participants have one-on-one meetings with the Peer Employment Specialist only as well as 

receive services through the State Division of Vocational Rehabilitation (DRS). 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Field Initiated Projects (FIPs) 

Kansas 

The Nexus of Employment, Health and Disability: A Study of Health Status and Quality of Life 

Among Medicaid Buy-In Participants 

University of Kansas Center for Research 

Joseph R. Pearson Hall; 1122 West Campus Road, 706A 

Lawrence, KS 66045-3101 

jhall@ku.edu 

Principal Investigator: Jean P. Hall, PhD 

Public Contact: 785/864-7083; Fax: 785/864-7799 

Project Number: H133G100082 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 10 $197,361; FY 11 $198,067; FY 12 $90,988

Abstract: This project is an in-depth, longitudinal study of participants in Working Healthy, the Kansas 

Medicaid Buy-In work program, to document long-term outcomes associated with increased work efforts and earnings as compared to a similar group of individuals not enrolled. Low-income people with 

disabilities represent a significant, and growing, health disparity population. Unemployment rates for 

this group are much higher than for the general population, at least in part because increased employment can jeopardize individuals’ federal disability cash benefits and health care coverage through Medicare and/or Medicaid. Medicaid Buy-In programs allow people with disabilities to work, accumulate 

assets, and get or maintain Medicaid coverage. This project aims to understand health and quality of life 

changes related to work and, in particular, participation in a Medicaid Buy-In work incentive program. 

This project studies disparities in the health among enrollees and non-enrollees in Working Healthy and 

addresses the following research questions: (1) What disparities exist among selected social determinants of health for Working Healthy participants (enrollees) and a comparable sample of low-income 

Kansas Medicaid beneficiaries with disabilities (non-enrollees)? (2) What is the relative health status 

of enrollees and non-enrollees, based on health care utilization patterns and costs over time; inpatient, 

outpatient, and emergency department use; co-morbidities; and overall costs? (3) What differences exist 

between adjusted gross incomes and earnings of enrollees and non-enrollees? (4) What is the relative 

effect of Working Healthy on health and quality of life outcomes for low-income, working age people 

with disabilities compared to people who may be eligible for but not enrolled in Working Healthy? and 

(5) Which of the selected social determinants best predict health outcomes and overall quality of life for 

low-income, working age people with disabilities? Project findings provide a greater understanding of 

the nexus of health, disability, and work interaction allowing for these particular social determinants of 

health disparity to be addressed at the federal, state, and local levels through the development of specific 

policy recommendations. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Field Initiated Projects (FIPs) 

Missouri 

Determining the Efficacy of the Self-Determined Career Development Model of Instruction to 

Improve Employment Outcomes for Adults with Developmental Disabilities 

Curators of the University of Missouri-on behalf of UMKC 

Institute on Human Development 

215 West Pershing Road; 6th Floor

Kansas City, MO 64108 

gottog@umkc.edu 

www.ngsd.org 

Principal Investigator: George S. Gotto, PhD 

Public Contact: Kelli Barton 816/235-8845; Fax: 816/235-1762 

Project Number: H133G120071 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 12 $200,000; FY 13 $200,000; FY 14 $200,000

Abstract: This project determines the efficacy of the Self-Determined Career Development Model 

(SDCDM) in improving employment outcomes for adults with intellectual and developmental disabilities. The SDCDM is a self-directed process using a three-phase problem-solving strategy in which a 

facilitator supports a person with a disability to identify and set a career or employment goal, develop an 

action plan to achieve that goal, and self-monitor and self-evaluate progress toward the goal, revising the 

action plan or goal as needed. Project objectives include: To build the capacity of employment facilitators to implement the SDCDM by providing training, technical assistance, and coaching on the model; 

to implement the three-phase SDCDM intervention with adults with I/DD; to measure the impact of the 

SDCDM on individual levels of self-determination; to measure the impact of the SDCDM on attainment 

of employment and career-related goals; to measure the impact of the SDCDM on individual levels of 

autonomy and self-regulation; to measure the fidelity of implementation of the SDCDM intervention; 

and to publish and disseminate the results of this research study. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Field Initiated Projects (FIPs) 

New Hampshire 

Development of an Employment Consultation Staff Training Model for Workplace Inclusion 

University of New Hampshire 

Institute on Disability 

56 Old Suncook Road, Suite 2 

Concord, NH 03301 

david.hagner@unh.edu 

www.alliance.unh.edu 

Principal Investigator: David Hagner, PhD 

Public Contact: 603/228-2084; Fax: 603/228-3270 

Project Number: H133G100176 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 10 $200,000; FY 11 $200,000; FY 12 $200,000

Abstract: This project develops an innovative evidence-based training and technical assistance model 

for implementation of job support interventions to enhance the inclusion of employees with significant 

disabilities into the culture of the workplace. The project follows an iterative user-centered development 

process consisting of four phases. During Phase 1 an online module is developed to train community 

rehabilitation program (CRP) staff, including job coaches and employment specialists, in analyzing 

workplace cultures using a standardized tool, and in using a set of strategies for employment consultation based on workplace culture analysis and research on facilitating natural supports in the workplace. 

In Phase 2, the process is field tested and evaluated through a multi-method study with CRP staff working in a diverse cross-section of CRPs in three states. Sixty CRP staff complete the training module and 

implement the consultation strategies with a CRP consumer with a significant disability who begins a 

supported or competitive job in an individualized community work setting. Additional survey data is 

collected from employers and employees and analyzed to examine employee workplace inclusion, job 

retention, and job satisfaction outcomes. Focus groups with participating CRP staff are used to evaluate 

the clarity and usability of the process and to revise the training module, assessment tool, and technical 

assistance process. Phase 3 consists of additional testing for final refinement of content and usability, 

to produce a scalable product that meets the needs of the target population. In Phase 4 the final revised 

training module is made available to vocational rehabilitation programs and their associated CRP partners throughout Rehabilitation Services Administration Region I in collaboration with the New England 

Technical Assistance and Continuing Education (TACE) Center, and to additional TACE centers through 

the national TACE network. Project outcomes result in a low-cost training for CRP staff in evidencebased strategies that improves both the job retention and satisfaction of employment service consumers 

with significant disabilities and the capacity of employers to support a diverse workforce. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Field Initiated Projects (FIPs) 

New Hampshire 

Sustainable Implementation of Family-Centered Transition Planning for Young Adults with 

Autism Spectrum Disorders 

University of New Hampshire 

Institute on Disability 

56 Old Suncook Road, Suite 2 

Concord, NH 03301 

david.hagner@unh.edu 

www.unh.edu 

Principal Investigator: Bryan Dague, EdD; David Hagner, PhD

Public Contact: 603/228-2084; Fax: 603/228-3270 

Project Number: H133G110158 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 11 $200,000; FY 12 $200,000; FY 13 $200,000

Abstract: This project develops a sustainable process for implementing a Family-Centered Transition 

Planning model for youth and young adults with autism spectrum disorders. Based on research demonstrating the effectiveness of Family-Centered Transition Planning in increasing student and parent 

expectations for adult life, student career decision-making, and student participation in employment 

and postsecondary education, this project develops an implementation package to embed this method of 

independent transition planning into the existing service and funding system on a long-term basis across 

multiple states. The planning model includes three components: (1) structured group information/training sessions for families related to post-high-school options, support funding, and planning; (2) development of individual support networks and person-centered planning meetings to develop a post-school 

plan and implement structured career exploration activities; and (3) ongoing social networking across 

families for information sharing and peer support. 
NIDRR Program Directory FY 2012 - Employment Outcomes

1-32

Field Initiated Projects (FIPs) 

New Hampshire 

A Randomized Controlled Trial of Two Vocational Models for Individuals with Psychiatric 

Disabilities and Criminal Justice Involvement 

Trustees of Dartmouth College 

Dartmouth Psychiatric Research Center 

Rivermill Commercial Center, Suite B4-1

85 Mechanic Street 

Lebanon, NH 03766 

gary.r.bond@dartmouth.edu 

Principal Investigator: Gary R. Bond, PhD 

Public Contact: 603/448-0263; Fax: 603/448-3976 

Project Number: H133G100110 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 10 $199,844; FY 11 $199,844; FY 12 $199,844

Abstract: This study compares the effectiveness of the Individual Placement and Support (IPS) to the 

Work Choice vocational models in assisting consumers in obtaining meaningful competitive employment outcomes and integrating into mainstream society. Both models share similar characteristics but 

differ in program philosophy. IPS emphasizes rapid job search with the assistance of an employment 

specialist who helps clients find jobs matching their preferences, skills, and work history. Work Choice 

emphasizes preparation in resume writing and interviewing, self-directed job search and referral services, peer mentoring, and ongoing peer support. This study conducts a 12-month randomized controlled 

trial involving 80 clients with psychiatric disabilities and criminal justice involvement, assigned to either 

IPS or Work Choice. Clients are recruited from two recovery centers located on the north and south sides 

of Chicago, which are part of Thresholds, a comprehensive psychiatric rehabilitation agency with a long 

tradition of providing vocational services. Participants are then stratified according to type of conviction (felony vs. misdemeanor) within site and randomized accordingly. Study participants include both 

clients newly enrolled to Thresholds and current clients who have not received Thresholds vocational 

services. Participants in both conditions receive a full range of other services consistent with their individualized recovery plans, including housing, wellness management and recovery, financial counseling, 

and integrated dual disorders treatment. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Field Initiated Projects (FIPs) 

New Hampshire 

A Prospective National Study of Sustaining IPS Through Vocational Rehabilitation and Mental 

Health Collaboration 

Trustees of Dartmouth College 

Dartmouth Psychiatric Research Center 

Rivermill Commercial Center, Suite B4-1; 85 Mechanic Street 

Lebanon, NH 03766 

gary.r.bond@dartmouth.edu 

Principal Investigator: Gary R. Bond, PhD 

Public Contact: 603/448-0263; Fax: 603/448-3976 

Project Number: H133G110161 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Shelley Reeves 

NIDRR Funding: FY 11 $199,811; FY 12 $199,981; FY 13 $198,937

Abstract: This project conducts a prospective study of the sustainability of evidence-based vocational 

services, specifically a two-year prospective study of programs in the Individual Placement and Support (IPS) learning collaborative. The project examines the barriers and facilitators to sustaining IPS in 

collaboration with the mental health and vocational rehabilitation systems in 13 participating states. At 

the program level, researchers conduct telephone interviews with IPS program leaders at baseline and 

again at two-year follow-up using a structured interview developed in prior research. These interviews 

document the rates of sustaining IPS for the overall collaborative and for different subgroups within the 

collaborative. At the state level, researchers conduct site visits during the second year, interviewing key 

leaders from state vocational rehabilitation agencies, mental health authorities, and Medicaid offices. 

The aim is to identify practical, malleable factors leading to the continuation versus the discontinuation 

of IPS services. 
NIDRR Program Directory FY 2012 - Employment Outcomes

1-34

Field Initiated Projects (FIPs) 

New York 

Organizational Practices to Increase Employment Opportunities for People with Disabilities: The 

Power of Social Networks 

Cornell University 

School of Industrial and Labor Relations 

171 Ives Faculty Building 

Ithaca, NY 14853-3901 

lhn5@cornell.edu 

Principal Investigator: Lisa H. Nishii, PhD 

Public Contact: 607/255-4431; Fax: 607/255-1836 

Project Number: H133G110219 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 11 $200,000; FY 12 $200,000; FY 13 $200,000

Abstract: The purpose of this study is to identify workplace policies and practices which present barriers and also facilitate maximal inclusion of people with disabilities in the workplace, with a focus on 

how leadership, informal climate, and social networks shape workforce participation, engagement, and 

success for persons with disabilities. The target population is people with disabilities, specifically individuals employed in the U.S. federal workforce. Project outcomes include: design and implementation 

of a survey measuring the impact of workplace policies, practices, climate, leadership, and social networks on the inclusion and employment success of people with disabilities; production of a final report 

to be shared with federal agency partners, and the Office of Personnel Management, Office of Disability 

Employment Policy, and the Equal Employment Opportunity Commission; and information to inform 

ways to improve employment outcomes for people with disabilities in the federal sector. 
NIDRR Program Directory FY 2012 - Employment Outcomes

1-35

Field Initiated Projects (FIPs) 

Pennsylvania 

Evaluation of a Training Program to Enhance Clinical Supervision of State Vocational 

Rehabilitation Supervisors 

Pennsylvania State University 

327 CEDAR Building 

University Park, PA 16802 

Principal Investigator: James T. Herbert, PhD 

Public Contact: 814/865-1887; Fax: 814/863-7750 

Project Number: H133G100234 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 10 $200,000; FY 11 $200,000; FY 12 $200,000

Abstract: This research study uses a multiple analysis of variance repeated measures, within-between 

interaction design to examine the effectiveness of a training program to increase supervisory knowledge, 

self-efficacy, supervisory working alliance, and helpful supervisory behavior. Using a mixed-methods 

approach to evaluate program effectiveness, researchers examine changes in clinical supervision behavior from both supervisor and counselor perspectives. A stratified random sample of supervisors (100 

selected to participate; 100 not selected to participate) is used to examine how changes in supervisor 

knowledge, self-efficacy, and working alliance as a result of the training program intervention impacts 

helpful clinical supervision behavior. The intervention involves a hybrid learning approach that includes 

an initial three-day, on-site (synchronous) training program followed up with 12 bi-weekly contact 

(synchronous and asynchronous) training sessions (90 minutes each session). This training program 

is repeated for six state vocational rehabilitation agencies over the three-year period. The goal of this 

research project is to develop an effective supervisory training program that significantly impacts rehabilitation counselor performance and ultimately improve vocational rehabilitation outcomes for persons 

with disabilities. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Field Initiated Projects (FIPs) 

Virginia 

Enhancing Outcome-Based Performance Measures for the Public Vocational Rehabilitation 

Program: Developing Return on Investment Models 

University of Richmond 

Robins School of Business 

28 Westhampton Way 

University of Richmond, VA 23173 

ddean@richmond.edu 

Principal Investigator: David H. Dean, PhD 

Public Contact: 804/289-8559

Project Number: H133G100169 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 10 $197,359; FY 11 $197,359; FY 12 $197,359

Abstract: This project tests the wider applicability of valid and methodologically sound processes for 

assessing the “return on investment” (ROI) within individual state vocational rehabilitation (VR) agencies, using models developed in Virginia. Additionally, this project expands on the preliminary work of 

the collaboration between the Virginia Department of Rehabilitative Services (DRS) and the Bureau of 

Disability Economics Research (BDER) at the University of Richmond. Having established a longitudinal data repository for the purpose of conducting long-term employment outcome evaluations, the DRS 

and BDER repository contains data on VR program participants from the administrative records of both 

DRS and the state. Project development includes several major components: (1) developing and testing a 

ROI model used in identifying the necessary components for a sound ROI model for VR, using Virginia 

data to develop VR-specific outcome models, and validating these models with other state VR agencies, including the Virginia Department for the Blind and Vision Impaired and the Maryland Division 

of Rehabilitation Services, using data from those states’ administrative records; (2) developing model 

interagency agreements and protocols for accessing employment and earnings data from existing state 

administrative records and from Social Security Administration, testing those models with the partner 

states, and providing technical assistance in their use; and (3) developing and testing guidance documents, and providing technical assistance to partner state VR agencies, to conduct ROI analyses with 

their own states’ administrative data. 
NIDRR Program Directory FY 2012 - Employment Outcomes

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Field Initiated Projects (FIPs) 

Wisconsin 

Improving Work Ability Among Breast Cancer Survivors 

University of Wisconsin-Madison 

Trace Center, College of Engineering 

1550 Engineering Drive; 2107 Engineering Centers Building 

Madison, WI 53706-1609 

msesto@wisc.edu 

Principal Investigator: Mary E. Sesto, PhD 

Public Contact: 608/262-6966

Project Number: H133G110003 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 11 $200,000; FY 12 $200,000; FY 13 $200,000

Abstract: The purpose of this project is to determine the feasibility and effect of WISE (Work ability Improvement through Symptom management and Ergonomic education), a web-based, survivorcentered intervention, on work ability in breast cancer survivors (BCS). Many BCS who continue to 

work report decreased ability to perform work activities. Not all BCS want to return to work; yet for 

those who do the inability to do so can have dramatic consequences on financial stability and access to 

health insurance. The primary aims are to: (1) refine and pilot test WISE, (2) determine the feasibility of 

WISE, and (3) determine the short-term effects of WISE on work ability. A secondary aim is to explore 

individual and workplace factors among BCS at risk for work disability. To accomplish these aims, 

BCS and health care providers evaluate the usability and feasibility of WISE and a two-arm randomized 

controlled trial is used to evaluate the effect of WISE on work ability. This project uses an innovative 

approach by applying a work systems model that focuses on improving work ability through optimizing 

the relationship between the work system and the work capacity of the individual. This is the first study 

to target both symptom management of BCS as it relates to work activities, and modifiable workplace 

risk factors to minimize work disability. The long-term goal is to develop effective interventions that 

improve employment outcomes, reduce work-related disability, and mitigate the economic impact of 

surviving cancer. 
Contents

Rehabilitation Research and Training Centers (RRTCs) ......................................................................3

Rehabilitation Engineering Research Centers (RERCs) .....................................................................10

Disability and Rehabilitation Research Projects .................................................................................11

Burn Injury Model Systems ................................................................................................................20

Spinal Cord Injury Model Systems .....................................................................................................27

Traumatic Brain Injury Model Systems ..............................................................................................43

Field Initiated Projects (FIPs) .............................................................................................................72

Health and Function

Maximizing health and function among people with disabilities is critical to the 

achievement of NIDRR’s mission and the associated higher-order goals of employment 

and community participation. Functional ability reflects the complex interaction between 

individuals and the environments in which they live. Accordingly, NIDRR conceptualizes 

and examines issues of health and function at the individual and systems levels. 

Individual level research focuses on the development and testing of new interventions 

that improve functional and health outcomes for individuals. At the systems level, 

NIDRR-supported research focuses on the organization, and delivery of health care and 

medical rehabilitation services.

NIDRR Program Directory FY 2012 - Health and Function

2-3

Rehabilitation Research and Training Centers (RRTCs) 

California 

Rehabilitation Research and Training Center in Neuromuscular Diseases (RRTC-NMD) 

University of California at Davis 

Physical Medicine & Rehabilitation

RRTC-NMD

4860 Y Street, Suite 3850

UC Medical Center

Sacramento, CA 95817-2307 

sandy.chin@ucdmc.ucdavis.edu 

www.ucdmc.ucdavis.edu/pmr/research/index.html 

Principal Investigator: Craig M. McDonald, MD 

Public Contact: Sandy Chin 916/734-4280; Fax: 916/734-7838 

Project Number: H133B090001 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 09 $800,000; FY 10 $800,000; FY 11 $800,000; FY 12 $800,000; FY 13 

$800,000

Abstract: The Rehabilitation Research and Training Center in Neuromuscular Diseases (RRTC-NMD) 

has five goals: (1) develop and test improved outcome measures for use in intervention and natural 

history studies in persons with neuromuscular diseases (NMDs); (2) identify or develop and test the 

effectiveness of new medical rehabilitation interventions, and document the effectiveness of existing 

interventions in persons with NMDs; (3) provide training, including graduate, pre-service, and in-service 

training, to help rehabilitation personnel effectively provide rehabilitation services to individuals with 

NMDs; (4) disseminate informational materials and provide technical assistance to individuals with 

NMDs, their representatives, providers, and other interested parties; and (5) serve as a national center 

of excellence in rehabilitation research for individuals with disabilities, their representatives, providers, and other interested parties. The RRTC-NMD conducts four research projects related to developing 

improved outcome measures. In Project 1, both currently used and novel clinical endpoints related to 

mobility and secondary conditions are studied. The clinical meaningfulness of those outcome measures 

are assessed in comparison to a new person-reported outcome measure (the NeuroQOL) which addresses 

impaired mobility, decreased self-care due to weakness, pain, and fatigue. In Project 2, the NeuroQOL 

instrument is further refined and validated for children 5 to 12 years of age who are commonly targeted 

for new interventions. Projects 3 and 4 evaluate novel and existing medical rehabilitation interventions in Duchenne muscular dystrophy (DMD). Project 3 uses a multicenter prospective natural history 

study of 347 individuals with DMD to evaluate existing medical rehabilitation interventions designed to 

enhance mobility and reduce the severity of secondary conditions. Project 4 examines the uses of a firstin-class medication to maintain or improve function in patients with DMD who have a premature stop 

codon mutation. Project 4 also focuses on individuals severely affected with DMD who are non-ambulatory and evaluates ataluren and its effects on mobility/upper extremity function, secondary conditions, 

and health-related quality of life. 
NIDRR Program Directory FY 2012 - Health and Function

2-4

Rehabilitation Research and Training Centers (RRTCs) 

District of Columbia 

Rehabilitation Research and Training Center on Secondary Conditions in Spinal Cord Injury 

MedStar Health Research Institute 

NRH Research 

102 Irving Street, NW 

Washington, DC 20010 

inger.h.ljungberg@medstar.net 

sci-health.org 

Principal Investigator: Suzanne L. Groah, MD 202/877-1196 

Public Contact: Inger Ljungberg, MPH 202/877-1694; Fax: 202/726-7521 

Project Number: H133B090002 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 09 $799,995; FY 10 $799,998; FY 11 $799,998; FY 12 $799,999; FY 13 

$800,000

Abstract: This RRTC focuses on the frequent and costly complications of obesity such as cardiometabolic syndrome (inclusive of obesity, insulin resistance, hypertension, dyslipidemia, and inflammation), 

and pressure ulcers among people with spinal cord injury (SCI), with a specific focus on the underserved. Utilizing novel diagnostic and therapeutic practices this RRTC addresses three major secondary 

conditions that lead to significant health decay in people with SCI. This RRTC includes three research 

(R1-R3) and training (T1-T3) projects. Project R1 determines the degree to which obesity is related to 

cardiometabolic health, cardiometabolic risk (CMR) factors, and atherosclerotic burden. Those requiring 

intervention based on CMR profile and atherosclerotic burden in R1 are selected to participate in Project 

R2, a randomized control trial examining impact of an omega-3 dietary supplement intervention. Project 

R3 determines the physiologic response of sacral and ischial skin to sitting and pressure relief. A behavioral self-management program is assessed to ensure future recommendations can be evidence-based. 

These research findings feed into three training activities that include culturally sensitive consumer 

education: T1 emphasizes underserved populations, T2 emphasizes professional training and education 

of rehabilitation and non-rehabilitation professionals utilizing online media, and T3 emphasizes dissemination through a state-of-science research and training conference. 
NIDRR Program Directory FY 2012 - Health and Function

2-5

Rehabilitation Research and Training Centers (RRTCs) 

Illinois 

Rehabilitation Research and Training Center on Enhancing the Functional and Employment 

Outcomes of Individuals Who Experience a Stroke 

Rehabilitation Institute of Chicago (RIC) 

345 East Superior Street 

Chicago, IL 60611-2654 

llovell@ric.org 

www.ric.org/research/centers/training/ 

Principal Investigator: Elliot J. Roth, MD 312/238-4864 

Public Contact: Linda Lovell, Project Coordinator 312/238-6197; Fax: 312/238-1417 

Project Number: H133B080031 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 08 $849,813; FY 09 $849,514; FY 10 $849,582; FY 11 $849,263; FY 12 

$849,981

Abstract: This project studies rehabilitation interventions and assessments focused on improved mobility and secondary conditions that have been designed with the intent of promoting efficient function 

in the workplace or at home. It also looks at the barriers and facilitators for return-to-work from the 

perspective of stroke survivors who are seeking employment. As new and better stroke treatments have 

become available, the number of stroke survivors living in the community has increased. Therefore, not 

only is there a need for further research on promising new interventions that promote health and function, but also a growing need for interventions that can be delivered in home and community settings. 

The Center’s research projects include: (1) a study of the effectiveness of stretching as hand therapy for 

sub-acute hemiparesis; (2) development of a low-cost, non-mechanized gait retraining device; (3) testing a self-management approach to community living, participation, and employment; (4) examining the 

barriers and enablers for return-to-work from the perspective of the of the individual who experienced 

the stroke; and (5) development of a return-to-work vocational assessment using virtual reality technology. For this project, the Rehabilitation Institute of Chicago has partnered with Northwestern University, 

the University of Illinois at Chicago, Washington University at St. Louis, Marquette University, and 

Archeworks, Inc., as well as the National Stroke Association, and the National Aphasia Association. 
NIDRR Program Directory FY 2012 - Health and Function

2-6

Rehabilitation Research and Training Centers (RRTCs) 

Ohio 

Rehabilitation Research and Training Center on Interventions for Children and Youth with TBI 

Children’s Hospital Medical Center 

Pediatric Rehabilitation 

3333 Burnet Avenue 

Cincinnati, OH 45229 

shari.wade@cchmc.org 

www.tbifocus.org 

Principal Investigator: Shari L. Wade, PhD 

Public Contact: 513/636-3370; Fax: 513/636-7360 

Project Number: H133B090010 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 09 $799,337; FY 10 $799,915; FY 11 $799,884; FY 12 $799,542; FY 13 

$799,682

Abstract: This project addresses the need for interventions for children and youth with traumatic brain 

injury (TBI). Interventions designed for this population must: (a) target the continuum of service delivery; (b) address the changing needs of the population; and most importantly, (c) include tools, training activities, and dissemination mechanisms for all of the “everyday” people who support children 

and youth. Project research identifies a reliable and valid measurement battery for assessing functional 

improvements arising from TBI interventions; and initiates a national, shared database of TBI outcomes 

data. This RRTC: (1) evaluates specific interventions to improve cognitive, behavioral, and psychosocial 

outcomes with a range of children and youth with TBI through randomized clinical trials; (2) evaluates 

the effectiveness of the validated interventions in natural settings; and (3) uses multi-method evaluations 

of the efficacy of training, technical assistance, and dissemination activities to verify the utility of the 

final products. 
NIDRR Program Directory FY 2012 - Health and Function

2-7

Rehabilitation Research and Training Centers (RRTCs) 

South Carolina 

Rehabilitation Research and Training Center on Secondary Conditions in Individuals with SCI 

Medical University of South Carolina 

77 President Street, Suite C101; MSC 700

Charleston, SC 29425 

swayngim@musc.edu 

www.longevityafterinjury.com

academicdepartments.musc.edu/chp/longevity_after_injury/funded_projects/rrtc

Principal Investigator: James S. Krause, PhD; Lee Saunders, PhD; 843/792-1337 

Public Contact: Karla Swayngim Reed 843/792-7051; Fax: 843/792-5649 

Project Number: H133B090005 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 09 $794,504; FY 10 $797,646; FY 11 $791,037; FY 12 $794,494; FY 13 

$786,639

Abstract: This Rehabilitation Research and Training Center combines an integrated program of research 

to identify risk and protective factors for secondary conditions in spinal cord injury (SCI) with a systematic program of education, training, dissemination, and technical assistance. This program allows 

new knowledge to be directly translated into prevention strategies at the policy, rehabilitative, clinical, 

community, and individual consumer levels. The key to prevention of secondary conditions is to first 

identify to whom they occur and why, then to widely educate and disseminate new knowledge to professionals and consumers in a format they can directly use in the prevention of secondary conditions. 

Through three research studies, integrating two theoretical models of risk of secondary conditions, the 

project identifies the risk and protective factors that put the greatest number of individuals at risk for the 

greatest number of conditions. Study 1 is a longitudinal follow-up of 1,755 participants who completed 

an extensive assessment of risk and protective factors for secondary conditions that include adverse 

events (e.g., pressure ulcers, hospitalizations), chronic conditions (e.g., pain, fatigue), and psychosocial conditions (e.g., depressive disorder). The study examines the stability of secondary conditions 

and identifies psychological, environmental, and behavioral predictors of future episodes of secondary 

conditions. Study 2 identifies the association of access to health services, including initial rehabilitation 

services (i.e., inpatient, outpatient only, no rehabilitation), with presence of secondary conditions. By 

using a population-based cohort, this study identifies the role of access to services among those with the 

fewest resources as they are at greatest risk for secondary conditions. Study 3 utilizes a 17-year followup among 845 participants from Rancho Los Amigos National Rehabilitation Center to investigate the 

stability of metabolic syndrome over time and its relationship with secondary conditions including pain, 

fatigue, and a depressive disorder. 
NIDRR Program Directory FY 2012 - Health and Function

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Rehabilitation Research and Training Centers (RRTCs) 

Washington 

Multiple Sclerosis Rehabilitation Research and Training Center 

University of Washington 

Department of Rehabilitation Medicine 

Box 356490 

Seattle, WA 98195-6490 

msrrtc@u.washington.edu 

www.msrrtc.washington.edu 

Principal Investigator: George H. Kraft, MD 206/543-7272 

Public Contact: 888/634-6778; 206/221-5302; Fax: 206/685-3244 

Project Number: H133B080025 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 08 $850,000; FY 09 $850,000; FY 10 $850,000; FY 11 $850,000; FY 12 

$850,000

Abstract: This project conducts a comprehensive program of research on issues critical to individuals 

living with multiple sclerosis (MS) in the areas of outcomes measurement, improved medical and community interventions, and improved employment outcomes. The project includes three coordinated core 

areas of research designed to enhance function and employment in individuals with MS. Program I: The 

Outcomes Measurement core includes a longitudinal study of 400 people with MS of secondary conditions such as pain, fatigue, depression, and cognitive impairment, and outcomes such as participation including employment. This program uses modern psychometric techniques to evaluate measures of these 

and other secondary conditions, develop cross-walking tables to allow comparison of scores across measures, and compare levels of pain, fatigue, and depression in MS to norms of the general population and 

other disability groups. Program II develops improved medical or community rehabilitation interventions by conducting a randomized controlled trial of individualized self-management training delivered 

by telephone to reduce secondary conditions such as fatigue and pain with a generic psychoeducational 

intervention for control. This program evaluates the impact on participation, including employment, in 

addition to evaluating reduction in interference from secondary conditions. Program III improves employment outcomes of persons with MS by examining the national Rehabilitation Services Administration’s RSA-911 database to identify process and outcome variables associated with successful vocational 

rehabilitation (VR) closures. Qualitative interviews are conducted with federal and state VR counselors 

to understand their perspectives on VR services and MS. Longitudinal data on employment is analyzed 

to evaluate changes in employment status over time. Researchers conduct follow-up surveys about the 

impact of accommodation services on employment with 200 recipients of services from MS Employment Assistance Service. The result is best practices and recommendations for improved employment 

services. 
NIDRR Program Directory FY 2012 - Health and Function

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Rehabilitation Research and Training Centers (RRTCs) 

Washington 

Rehabilitation Research and Training Center on Aging with a Physical Disability: Reducing 

Secondary Conditions and Enhancing Health and Participation, Including Employment 

University of Washington 

Department of Rehabilitation Medicine 

1959 NE Pacific Street

BB-919

Box 356490 

Seattle, WA 98195 

agerrtc.washington.edu 

Principal Investigator: Mark P. Jensen, PhD; Ivan Molton, PhD; 206/543-3185 

Public Contact: 888/634-6778; Fax: 206/685-3244 

Project Number: H133B080024 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Margaret Campbell, PhD 

NIDRR Funding: FY 08 $850,000; FY 09 $850,000; FY 10 $850,000; FY 11 $850,000; FY 12 

$850,000

Abstract: The goal of this center is to foster a better understanding of the challenges faced by those 

aging with a physical disability. The project focuses on four populations of persons with disabilities: 

persons with spinal cord injury (SCI), multiple sclerosis (MS), post-polio syndrome (PPS), and muscular dystrophy (MD). The project: (1) enhances understanding of the natural course of aging with these 

disabilities through a series of longitudinal surveys to examine the effects of aging in the development 

of secondary conditions; (2) develops and evaluates measures of key outcome domains for use with 

individuals aging with SCI, MS, PPS, and MD utilizing cross-population and cross-measure analyses 

to evaluate the psychometric properties of instruments used in disability research, and to develop better 

measures of depression, fatigue, participation, and pain; (3) tests the efficacy of two innovative interventions that enhance the health and participation in these populations, using remote monitoring of activity 

levels and a pilot intervention featuring remote prompting to enhance self-management of activity patterns; (4) enhances understanding of the experiences of individuals aging with SCI, MS, PPS, and MD 

in the workplace and with vocational rehabilitation and employment services through secondary data 

analysis and qualitative interviews; and (5) disseminates the findings from the research projects in an effective and efficient manner to individuals with disabilities, their family members, and their health care 

providers. 
NIDRR Program Directory FY 2012 - Health and Function

2-10

Rehabilitation Engineering Research Centers (RERCs) 

California 

Rehabilitation Engineering Research Center for Successful Aging with Disability: Optimizing 

Participation Through Technology (OPTT-RERC) 

University of Southern California 

Division of Biokinesiology and Physical Therapy 

1540 Alcazar Street, CHP-155 

Los Angeles, CA 90033 

winstein@usc.edu 

www.isi.edu/research/rerc 

Principal Investigator: Carolee J. Winstein, PhD, PT (USC); Philip S. Requejo, PhD (Rancho Los 

Amigos); 323/442-2903

Public Contact: Carolee J. Winstein, PhD, PT 323/442-2903; Fax: 323/442-1515 

Project Number: H133E080024 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Margaret Campbell, PhD 

NIDRR Funding: FY 08 $950,000; FY 09 $950,000; FY 10 $950,000; FY 11 $950,000; FY 12 

$950,000

Abstract: This project enhances the lives of individuals aging with and into disability through: (1) 

development and delivery of cutting-edge technologies for identification, evaluation, and rehabilitation of motor processes that facilitate or impede functional performance, employment, and community 

participation for the intended beneficiaries; (2) employment of state-of-the-art data management, dissemination, and performance evaluation techniques to ensure that the knowledge and products emergent 

from the RERC are accessible for all intended beneficiaries; (3) assembly of a multidisciplinary team 

of experts in clinical rehabilitation, engineering, and gerontology, along with a select group of technology partners, and disability advocates to ensure that OPTT-RERC’s short- and long-term outcome goals 

are successfully implemented; and (4) alignment of the clinical and technological strengths of several 

area programs into an integrated infrastructure to provide training opportunities for future rehabilitation 

researchers. The Dexterous Manipulation with the Fingertips Project evaluates a clinically useful metric 

and rehabilitation strategy for dynamic multi-finger dexterity (R1) and, in collaboration with the second 

project area, develops a home-use gaming system to promote retention and improvement of dexterous 

manipulation via immersion technologies (D1). The Virtual Reality (VR) and Gaming for Home-Based 

Motor Assessment and Training Project develops low-cost, home-based VR toolkits (VRT) for motor 

assessment and rehabilitation (D2) and investigates the efficacy of the VRT games for use in both the 

clinic setting and the home for individuals aging with and into disability (R2). The Optimizing Mobility 

in the Home and Community for Manual Wheelchair Users Project identifies optimal transfer and lifting mechanics to preserve the shoulder complex (R3) and uses VRT games for targeted and progressive 

shoulder exercise while sitting in a wheelchair (D3). Our Exploration of Factors Associated with Aging 

with Disabilities project (R4) expands our knowledge on the rate of functional changes and participation 

over time in a large group of individuals aging with disability. 
NIDRR Program Directory FY 2012 - Health and Function

2-11

Disability and Rehabilitation Research Projects 

Minnesota 

Health Care Coordination for Individuals with Physical Disabilities: Critical Elements and 

Consumer Outcomes 

University of Minnesota 

The Institute on Community Integration 

111 Pattee Hall, 150 Pillsbury Drive, SE 

Minneapolis, MN 55455-0223 

abery001@umn.edu 

Principal Investigator: Brian Abery, PhD 

Public Contact: 612/625-5592; Fax: 612/624-9344 

Project Number: H133A080049 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 08 $277,233; FY 09 $282,465; FY 10 $299,941; FY 11 $296,405; FY 12 

$299,900

Abstract: This project creates new knowledge about health care coordination within Minnesota’s Special Needs Basic Care (SNBC) program. Project activities include establishing and testing an operational 

definition of health care coordination for adults with physical disabilities and examining the extent to 

which the various components of health care coordination enhance access to health care, improve health 

outcomes, and create cost savings. The project uses a Participatory Planning and Decision Making 

process and key informant interviews to identify, classify, and richly describe care management models 

used in SNBC as well as the critical components of effective care coordination. Cognitive testing and 

reliability and validity assessment are used to modify several instruments to measure the elements of 

managed care and managed care outcomes for persons with physical disabilities. Finally, a combination 

of survey research (in-person interviews) and analysis of secondary data sets (Centers for Medicaid and 

Medicare utilization information, and Minnesota Department of Human Services [DHS] assessment and 

utilization data) is used to examine managed care outcomes for a total of 350 individuals participating in 

the SNBC program, taking into account variables such as type and severity of disability (including the 

presence of dual diagnoses), urban or rural location, age, and other demographic characteristics known 

or hypothesized to be associated with health care access, outcomes, and costs. The impact of care coordination models is tested on several outcomes including health care access (Health Care Quality Scale, 

annual DHS mandated health care accessibility survey results), outcomes (including but not limited to 

health care self-direction, stress, disability impact), and costs. Products from this line of research include 

an operational definition of the elements of care coordination, validated reliable instrumentation to measure elements of care coordination, and academic and research-to-practice publications describing the 

impact of care coordination on access to health care, health care outcomes, and cost. 
NIDRR Program Directory FY 2012 - Health and Function

2-12

Disability and Rehabilitation Research Projects 

New Hampshire 

Health and Health Care Disparities Among Individuals with Disabilities 

University System of New Hampshire 

Child Development and Rehabilitation Center 

51 College Road 

Durham, NH 03824-3585 

charles.drum@unh.edu 

www.iod.unh.edu/Projects/health_disparities/project_description.aspx

Principal Investigator: Charles Drum, JD, PhD 

Public Contact: 603/862-4320; Fax: 603/862-0555 

Project Number: H133A100031 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Shelley Reeves 

NIDRR Funding: FY 10 $450,000; FY 11 $450,000; FY 12 $450,000

Abstract: The Health Disparities Project generates new knowledge about health access and health 

outcomes, and translates and disseminates the findings for researchers, policy makers, and others. Assisted by an assembled national expert panel and other key project staff, the project determines working 

definitions, key questions, and analytic models for the studies. Disability perspectives are integrated 

throughout the project process from development of the research hypotheses and selection of design to 

analysis of data. This project has four major components: (1) review and synthesize existing health and 

health care access among individuals with disabilities and subgroups of individuals with disabilities; (2) 

use the Medical Expenditure Survey data to perform two series of logistic regression and path analysis 

modeling studies; the first series of studies determines models of systems level, environmental level, and 

individual level factors that relate to health care access among persons with a range of disabilities; the 

second series extends these analyses to determine models of health outcomes for persons with a range 

of disabilities; (3) utilize research findings in future research, program, and policy development through 

proactive and passive dissemination methods; and (4) integrate project activities to ensure the field of 

health disparities research advances beyond documentation to explanation, and opportunity for resolution. 
NIDRR Program Directory FY 2012 - Health and Function

2-13

Disability and Rehabilitation Research Projects 

New York 

Classification and Measurement of Medical Rehabilitation Interventions 

Mount Sinai School of Medicine 

Department of Rehabilitation Medicine 

One Gustave L. Levy Place, Box 1240 

New York, NY 10029-6574 

marcel.dijkers@mssm.edu 

Principal Investigator: Marcel Dijkers, PhD 

Public Contact: 212/659-8587; Fax: 212/348-5901 

Project Number: H133A080053 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 08 $350,000; FY 09 $350,000; FY 10 $350,000; FY 11 $350,000; FY 12 

$350,000

Abstract: This project develops a blueprint, and performs research to explore strategies and methods 

that are needed to create and test a full Rehabilitation Treatment Taxonomy (RTT) covering all treatments (experience-based, medications, education, assistive devices, etc.) delivered in medical rehabilitation. Development of an RTT is a multi-year, multidisciplinary process requiring the interweaving of 

many different conceptual and empirical steps guided by an overall blueprint to direct and link individual efforts. Specifically, in phase 1, the project scrutinizes existing treatment literature for theories 

that underlie treatment; develops a theoretical framework; specifies performance requirements and 

practical constraints for an RTT; and reviews existing ad-hoc classifications for spinal cord injury (SCI), 

traumatic brain injury (TBI), stroke, and joint replacement rehabilitation for practicality. Researchers 

present the resulting blueprint for feedback at an interdisciplinary conference with representatives of all 

rehabilitation disciplines, revise the blueprint as necessary in response to feedback, and in phase 2, use 

this feedback to develop two partial taxonomies: (a) a taxonomy of interventions to improve ambulation 

in persons with neurological disorders, and (b) a taxonomy of treatments of executive dysfunction after 

acquired brain injury. Evaluation of the process of development and operationalization of the taxonomy 

is used to modify, expand, and enhance the blueprint. A second interdisciplinary conference is used to 

present the modified blueprint to the rehabilitation field and obtain input on directions the field needs to 

take to develop the entire RTT. 
NIDRR Program Directory FY 2012 - Health and Function

2-14

Disability and Rehabilitation Research Projects 

North Carolina 

TBI Model System Collaborative Study of Amantadine for Post TBI Irritability and Aggression 

Carolinas HealthCare System 

Carolinas Rehabilitation 

1100 Blythe Boulevard 

Charlotte, NC 28232 

flora.hammond@carolinashealthcare.org 

www.carolinasrehabilitation.org/body.cfm?id=200 

Principal Investigator: Flora M. Hammond, MD 

Public Contact: 704/355-4330; Fax: 704/355-0709 

Project Number: H133A080035 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 08 $855,000; FY 09 $855,000; FY 10 $855,000; FY 11 $855,000; FY 12 

$855,000

Abstract: This study focuses on the challenging problem of irritability (primary aim) and aggression 

(secondary aim) in post-traumatic brain injury (TBI) by using a rigorous approach to generate and disseminate new knowledge on this high impact, pervasive, and under-studied problem that affects approximately 29 to 71 percent of individuals with TBI. Building upon prior research, project goals include: 

(1) assessing the effect of amantadine for 28 days at reducing TBI irritability; (2) assessing the effect of 

amantadine for 28 days at reducing TBI aggression; (3) assessing the effect of amantadine for 60 days 

on TBI irritability and aggression; and (4) assessing the effect of amantadine on cognitive function following TBI. Continuous input from the TBI community is incorporated into the development and implementation of the project, and throughout the course of this project in the areas of research implementation, interpretation of findings, knowledge translation, project planning, and evaluation. Additionally, 

this project is a collaborative research partnership between five other prominent TBI research centers: 

University of Washington, The Institute for Rehabilitation and Research, The Ohio State University, 

Kessler Institute for Rehabilitation, and Spaulding Rehabilitation Hospital. The knowledge generated by 

this project benefits those living with TBI by increasing awareness through targeted products and training with healthcare providers, consumers, researchers, vocational counselors, independent living providers, third party payers, and policy makers. 
NIDRR Program Directory FY 2012 - Health and Function

2-15

Disability and Rehabilitation Research Projects 

Ohio 

Individualized Planning for the First Year Following Acute Rehabilitation Project 

The Ohio State University 

1166 Dodd Rehab Hospital

480 Medical Center Drive 

Columbus, OH 43210 

monica.lichi@osumc.edu 

www.ohiovalley.org 

Principal Investigator: John D. Corrigan, PhD 

Public Contact: Monica A. Lichi, MS Ed., PC, MBA 614/293-3802; Fax: 614/293-8886 

Project Number: H133A080023 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 08 $854,780; FY 09 $854,881; FY 10 $854,469; FY 11 $853,685; FY 12 

$854,475

Abstract: This project conducts a practice based evidence (PBE) study of individual differences in 

demographic characteristics, pre-morbid status, injury-related conditions, and medical course that differentially predict the effectiveness of rehabilitation interventions on functional independence, participation, and subjective well-being up to one year following traumatic brain injury (TBI). Incorporating data 

collected for the NIH-funded PBE study, this project focuses on acute rehabilitation, and on the recovery 

processes occurring after discharge from rehabilitation. The PBE methodology studies naturally occurring differences in treatment practices in order to identify individual differences in treatment effectiveness. It allows a large number of intervention-by-impairment interactions to be examined, while individual patient differences, including severity of TBI and medical complications, are controlled. Data is 

collected at 10 TBI rehabilitation programs in the United States and Canada: Ohio Regional TBI Model 

System, Carolinas TBI Model System, New York TBI Model System at Mt. Sinai, National Rehabilitation Hospital, Shepherd Center, Intermountain Medical Center, Rush University Medical Center, Brooks 

Rehabilitation Hospital, Loma Linda University Rehabilitation Institute, and the Toronto Rehabilitation 

Institute. Research subjects are 2,315 consecutive, consenting patients admitted for rehabilitation of a 

moderate or severe TBI. Interviews occur at three and six months post-discharge and one year post-injury allowing for detailed characterization of change during the first year of recovery. The Individualized 

Planning for the First Year Following Acute Rehabilitation Project is a multi-center research partnership 

among the Ohio Regional Traumatic Brain Injury Model System; the Institute for Clinical Outcomes 

Research in Salt Lake City, Utah; the TBI Model Systems National Data and Statistical Center; and the 

Rocky Mountain Regional Brain Injury System at Craig Hospital in Colorado. 
NIDRR Program Directory FY 2012 - Health and Function

2-16

Disability and Rehabilitation Research Projects 

Pennsylvania 

Collaboration on Mobility Training (COMIT) 

University of Pittsburgh 

UPMC Rehabilitation Institute 

1400 Locust Street, Building B, Suite 11516 

Pittsburgh, PA 15219 

greekk@upmc.edu 

www.upmc-sci.org; www.rehabmedicine.pitt.edu 

Principal Investigator: Michael L. Boninger, MD 412/692-4893 

Public Contact: Karen Greenwald, RN 412/232-7949; Fax: 412/232-7535 

Project Number: H133A120004 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 12 $900,000; FY 13 $900,000; FY 14 $900,000; FY 15 $900,000; FY 16 

$900,000

Abstract: This project addresses lack of training in wheelchair use and maintenance provided to individuals with spinal cord injury (SCI) through randomized controlled trial of two training interventions: 

the Wheelchair Skills Program (WSP) and the Wheelchair Maintenance Training Program (WMTP). The 

WSP includes an assessment, the Wheelchair Skills Test (WST), and a training protocol (WSTP). This 

project: (1) tests the ability of the WSTP to improve manual wheelchair skills in individuals with chronic 

SCI; (2) refines and tests the WMTP, a readily translatable intervention to improve the maintenance of 

manual and power wheelchairs by users with SCI and their caregivers; (3) identifies the relative benefits 

of the combination of WSP and WMTP on quality of life of wheelchair users; and (4) develops and tests 

readily accessible web-based training programs for clinicians to learn the WSP and WMTP. By improving training in use and maintenance, the project aims to reduce wheelchair breakdowns and repetitive 

strain injuries for manual wheelchair users. 
NIDRR Program Directory FY 2012 - Health and Function

2-17

Disability and Rehabilitation Research Projects 

Pennsylvania 

Rehabilomics: Revolutionizing 21st Century TBI Care and Research 

University of Pittsburgh 

Department of Physical Medicine & Rehabilitation 

3471 Fifth Avenue, Suite 202 

Pittsburgh, PA 15213 

wagnerak@upmc.edu 

www.rehabmedicine.pitt.edu/content.asp?id=802 

Principal Investigator: Amy K. Wagner, MD 

Public Contact: 412/648-6666

Project Number: H133A120087 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 12 $430,100; FY 13 $430,090; FY 14 $430,100; FY 15 $430,100; FY 16 

$430,100

Abstract: This project provides comprehensive, multidisciplinary services for individuals with traumatic brain injury (TBI), and applies the principles of Rehabilomics to develop systems-based and 

best-practice approaches to person-centered care that maximally impact function and recovery. The 

project includes site-specific research exploring the relationship between dopamine system dysfunction 

following TBI and genetic variation in dopamine-related genes. In addition to contributing longitudinal 

data to the TBI Model Systems national database, this project conducts a rehabilitation technology pilot 

component for developing ecological momentary assessment tools for real-time symptom journaling and 

data collection tailored to individuals with TBI, infrastructure that critically links biomarkers, and other 

molecular signatures with assessments grounded in the International Classification of Functioning, Disability, and Health. In addition, the TBI Model System disseminates research findings in the region and 

nationally through seminars, presentations at professional and consumer meetings, publishing in professional and consumer journals, and collaboration with the Model Systems Knowledge Translation Center. 
NIDRR Program Directory FY 2012 - Health and Function

2-18

Disability and Rehabilitation Research Projects 

Texas 

Modulation of Catabolism Mediated by Catecholamine in Severely Burned Children: Analysis of 

Outcomes at Hospital Discharge, 6 Months, 1, 2, 5, 10, 15 and 20 Years Post-Injury 

University of Texas Medical Branch 

The University of Texas Medical Branch at Galveston 

815 Market Street 

Galveston, TX 77550 

kepperso@utmb.edu 

Principal Investigator: David Herndon, MD; Oscar Suman, PhD; 409/770-6731 

Public Contact: Kathy Epperson 409/770-6573; Fax: 409/770-6919 

Project Number: H133A120091 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 12 $373,000; FY 13 $373,000; FY 14 $373,000; FY 15 $373,000; FY 16 

$373,000

Abstract: This Pediatric Burn Center conducts clinical research studies that aim to modulate the catabolic and hypermetabolic response to burn trauma and improve long-term outcomes in children with 

severe burns. Site-specific studies assess: (1) the efficacy of propranolol administered for one year postburn to diminish the effects of catecholamine to reduce the hypermetabolic and catabolic response, and 

(2) the efficacy of the combination of oxandrolone plus propranolol administered for one year post-burn 

to diminish the effects of catecholamine to reduce the hypermetabolic and catabolic response. 
NIDRR Program Directory FY 2012 - Health and Function

2-19

Disability and Rehabilitation Research Projects 

Washington 

Controlled Trial of Venlafaxine XR for Depression After SCI: A Multisite Study 

University of Washington 

Department of Rehabilitation Medicine

Harborview Medical Center 

325 Ninth Avenue 

Seattle, WA 98104 

chb@u.washington.edu 

sci.washington.edu 

Principal Investigator: Charles H. Bombardier, PhD 

Public Contact: Christian Buhagiar 206/897-4731; Fax: 206/897-4790 

Project Number: H133A060107 

Start Date: January 01, 2007 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 06 $2,198,213; FY 07 $899,981; FY 08 $899,982; FY 09 $899,974; FY 10 

$895,874; FY 12 (No-cost extension through 12/31/2013)

Abstract: This project is a multisite, randomized, double-blind, placebo controlled trial of venlafaxine 

XR (Effexor XR) in 168 adults with spinal cord injury (SCI) and major depressive disorder (MDD) who 

are 18 to 65 years old and one or more years post injury. The purpose of the study is to examine the efficacy and tolerability of venlafaxine XR as a treatment for MDD. The primary outcome is the percent 

of responders (those who report at least a 50 percent reduction in depression severity from baseline to 

the end of treatment) in the venlafaxine XR versus placebo control group using intent-to-treat analysis. 

Secondary outcomes include changes in pain, health-related quality of life, and participation. A successful clinical trial could lead to more aggressive identification and treatment of MDD as well as improved 

health and quality of life in this important population. This is a collaborative project with the Northwest 

Regional Model Spinal Cord Injury System. 
NIDRR Program Directory FY 2012 - Health and Function

2-20

Burn Injury Model Systems 

Colorado 

UCD Burn Model System Data Coordination Center (BMS/DCC) 

University of Colorado Denver - Anschutz Medical Campus 

Colorado School of Public Health

Department of Biostatistics and Informatics 

13001 East 17th Avenue, Box B119 

Aurora, CO 80045 

kara.mcmullen@ucdenver.edu 

bms-dcc.ucdenver.edu 

Principal Investigator: Dennis C. Lezotte, PhD 

Public Contact: Kara McMullen, Project Coordinator 303/724-4388; Fax: 303/724-4491 

Project Number: H133A070006 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 07 $300,000; FY 08 $300,000; FY 09 $300,000; FY 10 $300,000; FY 11 

$300,000; FY 12 (No-cost extension through 9/30/2013)

Abstract: The Burn Model System Data Collection Center (BMS/DCC) provides scientific and technical support to the Burn Model Systems’ mission, which is “to conduct research that contributes to evidence-based rehabilitation and clinical interventions as well as develop practice guidelines that improve 

the lives of individuals with burn injuries.” The BMS/DCC addresses four important areas in rehabilitation research: project design and management, data management and quality, scientifically appropriate 

analytical support, and broad dissemination for long-term impact. The data center strives to provide 

quality support by developing integrated information systems, providing professional consultation, and 

designing and delivering dedicated training programs. The primary goal is to improve the scientific 

rigor of clinical and rehabilitation research in the area of burn injury. Areas of specific concern include: 

collecting multi-site longitudinal outcomes data, coordinating multi-center research data, providing 

analysis and oversight to achieve scientifically sound multi-center collaborative and site-specific clinical 

and rehabilitative research, collaborating with other National Data and Statistical Centers to exchange 

ideas and ensure the most efficient operations, publishing scientifically rigorous articles, and coordinating other effective dissemination strategies. The BMS/DCC consists of two functionally independent but 

related units, a data administration core and an analytical core. The data administration core continues to 

support and manage the BMS Level 1 (National) Database while implementing the necessary improvements to ensure quality and scientifically sound data for burn research. In addition, the data administration core implements web-based data collection and research support tools for collaborative modules 

and, as needed, assists in conducting the site-specific research studies. The analytical core provides 

statistical support (analysis, consultation, study-design, and study implementation) for projects that use 

either Level 1 data or data generated from collaborative and site-specific research. 
NIDRR Program Directory FY 2012 - Health and Function

2-21

Burn Injury Model Systems 

Maryland 

Johns Hopkins University Burn Injury Rehabilitation Model System (JHU-BIMS) 

Johns Hopkins School of Medicine 

Johns Hopkins Burn Center Adult Unit

Johns Hopkins Bayview Medical Center Pediatric Unit

Johns Hopkins Hospital 

4940 Eastern Avenue 

Baltimore, MD 21224 

lallen19@jhmi.edu 

www.hopkinsmedicine.org/burn/research/index.html 

Principal Investigator: James A. Fauerbach, PhD 410/550-0894 

Public Contact: Lauren Allen 410/550-9846; Fax: 410/550-8161 

Project Number: H133A070045 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 07 $362,500; FY 08 $362,500; FY 09 $362,500; FY 10 $362,500; FY 11 

$362,500; FY 12 (No-cost extension through 9/30/2013)

Abstract: The Johns Hopkins University Burn Injury Model System (JHU-BIMS) program of research 

exhibits a comprehensive continuum of care, and contributes data on survivors of major burn injury to 

the national, collaborative database on burn injury with outcome assessments at discharge and at 6, 12, 

and 24 month post-injury. The JHU-BIMS conducts three research projects. First, JHU-BIMS conducts a 

clinical trial to test the potential benefits of two customized gaming systems (Wii Sports for the Nintendo Wii and Kinects Sports for the XBox 360) as adjunctive methods to reduce pain and distress during 

burn rehabilitation. Second, the JHU-BIMS conducts a randomized control trial to test the effectiveness 

of its intervention titled “Safety, Meaning, Activation, and Resilience Training” (SMART). Developed 

and pilot tested in a prior NIDRR Burn Model System funding cycle, SMART is an innovative, foursession cognitive-behavioral therapy intervention that aims at reducing acute psychological distress and 

thereby prevent chronic psychiatric disorder and disability. Pilot data has shown that SMART effectively 

reduces post-trauma distress, sleep disturbance, and depression relative to supportive psychotherapy. 

Third, the JHU-BIMS collaborates with the Burn Model System national database to conduct prospective, multi-site study assessing the long term needs of burn survivors. The module titled “Long-Term 

Follow-up of the National Database Sample” augments the original two-year outcome study to include 

further outcome assessment at five and ten years post-burn injury. The JHU-BIMS works with the other 

funded Burn Model Systems and the Model Systems Knowledge Translation Center to disseminate 

evidence-based burn rehabilitation information, methods, and tools. 
NIDRR Program Directory FY 2012 - Health and Function

2-22

Burn Injury Model Systems 

Massachusetts 

Boston-Harvard Burn Injury Model System 

Spaulding Rehabilitation Hospital 

125 Nashua Street 

Boston, MA 02114 

www.bh-bims.org 

Principal Investigator: Jeffrey C. Schneider, MD 

Public Contact: 617/573-2742; Fax: 617/573-2769 

Project Number: H133A120034 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 12 $361,000; FY 13 $361,000; FY 14 $361,000; FY 15 $361,000; FY 17 

$361,000

Abstract: The goal of this project is to provide a multidisciplinary comprehensive system of care for 

individuals with burn injury that spans the complete continuum from preventative programs and emergency services to community reintegration and vocational rehabilitation and fosters burn injury rehabilitation research. The project includes a site-specific project to treat pain, itch, and psychological impairments in burn injury using transcranial Direct Current Stimulation (tDCS), a novel, noninvasive method 

of brain stimulation. The project also contributes to the Burn Injury Model System national database to 

facilitate the comprehensive longitudinal assessment of burn injury outcomes. In addition, the Model 

System disseminates research findings in the region and nationally through seminars, presentations at 

professional and consumer meetings, publishing in professional and consumer journals, and collaboration with the Model Systems Knowledge Translation Center. The project is a collaboration of clinical 

and research resources of Harvard Medical School, Partners Healthcare System (Spaulding Rehabilitation Hospital, Massachusetts General Hospital), and Shriners Hospitals for Children. 
NIDRR Program Directory FY 2012 - Health and Function

2-23

Burn Injury Model Systems 

Texas 

North Texas Burn Rehabilitation Model System (NTBRMS) 

The University of Texas Southwestern Medical Center 

Department of Physical Medicine and Rehabilitation 

5323 Harry Hines Boulevard 

Dallas, TX 75390-9136 

radha.holavanahalli@utsouthwestern.edu 

www.utsouthwestern.edu/education/medical-school/departments/physical-medicine/ntbrms/index.html 

Principal Investigator: Karen Kowalske, MD 214/648-2240 

Public Contact: Radha Holavanahalli, PhD 214/648-9540; 214/648-3654; Fax: 214/648-2005 

Project Number: H133A070024 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 07 $362,500; FY 08 $362,500; FY 09 $362,500; FY 10 $362,500; FY 11 $362,500; 

FY 12 (No-cost extension through 9/30/13)

Abstract: The North Texas Burn Rehabilitation Model System (NTBRMS) includes one collaborative 

research module project entitled “Long-Term Follow-up of the Burn Model System National Database 

Sample (LTF-NDS)” and two site specific research studies entitled “Biomechanical Properties of Burn 

Scar” and “Efficacy of Social Interaction Skills Training Post Burn Injury.” Collaboration occurs on 

many levels at the NTBRMS. Clinical collaboration is the hallmark of the burn team, which includes 

individuals from several institutions who work together seamlessly as well as collaboration with our 

rural care providers through outreach clinics. Research collaboration occurs locally with the surgeons 

and academic computing and nationally with the other model systems. The evaluation plan specifically 

focuses on the overall objectives for demonstration, research, and dissemination with specific quantifiable targets, which are reassessed quarterly. Dissemination of NTBRMS materials occurs at many levels 

and in a variety of formats: lectures by key personnel, publication in peer reviewed journals, a quarterly 

newsletter, and an accessible website available in English and Spanish. The NTBRMS collaborates with 

NIDRR-funded Model Systems Knowledge Translation Center (MSKTC) by participating in its systematic reviews of evidence and facilitating knowledge management by identifying the information needs 

and barriers among the various stakeholders both at national and local levels. 
NIDRR Program Directory FY 2012 - Health and Function

2-24

Burn Injury Model Systems 

Texas 

North Texas Burn Rehabilitation Model System (NTBRMS) 

The University of Texas Southwestern Medical Center 

Department of Physical Medicine and Rehabilitation 

5323 Harry Hines Boulevard 

Dallas, TX 75390-9136 

radha.holavanahalli@utsouthwestern.edu 

www.utsouthwestern.edu/education/medical-school/departments/physical-medicine/ntbrms/index.html 

Principal Investigator: Karen Kowalske, MD 214/648-2240 

Public Contact: Radha Holavanahalli, PhD 214/648-9540; 214/648-3654; Fax: 214/648-2005 

Project Number: H133A120090 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 12 $383,000; FY 13 $383,000; FY 14 $383,000; FY 15 $383,000; FY 16 

$383,000

Abstract: This project provides comprehensive, multi-disciplinary services to children and adults who 

sustain major burn injuries from the time of injury to long-term follow-up. The project contributes data 

to the Burn Model System national database, including follow-up data on eligible subjects at 6 months, 

1, 2, 5, and 10 years, and extends follow-up to every 5 years thereafter. NTBMRS includes a quarterly 

rural satellite clinic to serve the needs of those patients who cannot return to the burn center for a followup. The project includes two site-specific projects: (1) The Effect of Heat Intolerance on Exercise and 

Physical Function, a prospective, randomized single center study on the efficacy of an exercise intervention and outcomes relating to heat intolerance among survivors of a burn injury to assess if perception 

of heat intolerance and the related fear of exercise among burn survivors changes following an exercise 

intervention; and (2) The Evaluation of a Web-Based Social Skills Training (SST) Program for Burn 

Survivors. A program that is designed to assist burn survivors who have a disfigurement in preparing for 

social situations after leaving the hospital. The NTBRMS collaborates with the Model System Knowledge Translation center in planning its dissemination activities and providing scientific results and information to clinical and consumer audiences by participating in its systematic reviews of evidence and 

development of consumer factsheets. Other dissemination efforts include state-of-the-science meetings, 

several webinars, and other materials. 
NIDRR Program Directory FY 2012 - Health and Function

2-25

Burn Injury Model Systems 

Washington 

University of Washington Burn Model System 

University of Washington 

Department of Surgery

Division of Plastic Surgery

Department of Rehabilitation Medicine 

Harborview Medical Center

325 Ninth Avenue; Box 359796 

Seattle, WA 98104 

carrough@u.washington.edu 

burnrehab.washington.edu/ 

Principal Investigator: Nicole Gibran, MD; Peter C. Esselman, MD

Public Contact: 206/731-3209; Fax: 206/731-3656 

Project Number: H133A070047 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 07 $362,458; FY 08 $362,459; FY 09 $362,453; FY 10 $362,458; FY 11 

$362,449; FY 12 (No-cost extension through 4/30/2013)

Abstract: The University of Washington Burn Model System includes one multi-site, collaborative project, and two site-specific projects. Project 1: Psychological and Social Needs of Long Term Survivors of 

Major Burn Injury is a collaborative study (lead center Baltimore) to identify the needs of persons five 

and ten years after injury. Project 2 (Site-Specific): Expanded Delivery Model for Burn Rehabilitation 

incorporates a novel intervention, an “expanded care provider”, who enables clinicians to “reach out” to 

individuals with burn injury and for them to “reach in” to care providers whenever care is needed, rather 

than on a rigid schedule to determine if this improves burn rehabilitation outcomes. In a randomized 

trial, Group 1 receives standard outpatient clinic-based rehabilitation. Group 2 has an additional care 

provider who uses multiple modalities to manage the multifaceted sequelae of thermal injury. Outcomes 

are assessed using an individualized Goal Attainment Scale and the validated Burn Specific Health 

Scale. Project 3 (Site Specific): Identification of the Pathways to Scarring utilizes bioinformatics tools to 

identify gene expression pathways associated with hypertrophic scarring. In addition, the project contributes long-term follow-up data to the national database maintained at the University of Colorado in 

Denver. 
NIDRR Program Directory FY 2012 - Health and Function

2-26

Burn Injury Model Systems 

Washington 

Northwest Regional Burn Model System Center 

University of Washington 

Department of Surgery

Division of Plastic Surgery

Department of Rehabilitation Medicine 

Harborview Medical Center

325 Ninth Avenue

Box 359796 

Seattle, WA 98104 

carrough@u.washington.edu 

burnrehab.washington.edu/ 

Principal Investigator: Nicole Gibran, MD; Peter C. Esselman, MD; 206/744-3140 

Public Contact: 206/731-3209; Fax: 206/731-3656 

Project Number: H133A120024 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 12 $383,000; FY 13 $383,000; FY 14 $383,000; FY 15 $383,000; FY 16 

$383,000

Abstract: This project builds upon past efforts to address significant issues of concern to burn survivors 

– pain management, distress, hypertrophic scarring, community re-entry, and return to work. In addition 

to participation in the long-term outcomes national database, the project includes one major dissemination project and one site-specific research project. Project 1 – Return to Work After Burn Injury Website 

Dissemination Project utilizes web-based dissemination efforts to provide education regarding challenges and processes encountered following a significant burn injury. Project 2 – Impact of Hypnosis on 

Post-Burn Pain and Itch: Randomized Controlled Trial utilizes expertise in clinical management of pain 

and itch, and experience with hypnosis as an innovative non-pharmacologic intervention. The control 

group receives pharmacologic treatment using an established treatment algorithm for post-burn itch; the 

experimental group undergoes hypnosis as well as a standard treatment regimen. 
NIDRR Program Directory FY 2012 - Health and Function

2-27

Spinal Cord Injury Model Systems 

Alabama 

UAB Spinal Cord Injury Model System 

University of Alabama at Birmingham 

Spain Rehabilitation Center 

619 19th Street South - SRC 529 

Birmingham, AL 35249-7330 

jfgreen@uab.edu 

www.spinalcord.uab.edu 

Principal Investigator: Amie B. Jackson, MD; J. Scott Richards, PhD; 205/934-3330 

Public Contact: Jacqueline Green, Director, Research Services 205/934-3283 (V); 205/934-4691 

(TTY); Fax: 205/975-4691 

Project Number: H133N110008 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 11 $475,998; FY 12 $475,998; FY 13 $475,998; FY 14 $475,998; FY 15 

$475,998

Abstract: The University of Alabama Spinal Cord Injury Model System (UAB-SCIMS) spans the clinical continuum from emergency services through rehabilitation and community re-entry. This multidisciplinary, comprehensive system provides rehabilitation services specifically designed to meet the needs of 

individuals with spinal cord injury (SCI). The project participates in one or more collaborative research 

modules, and one in-house research project, the latter aimed at improving the health and function of 

individuals served. The in-house research project is a controlled intervention trial of a novel approach to 

treating neuropathic pain, one of the most problematic and difficult to treat complications of SCI. UABSCIMS continues to participate in data collection activities for the National Spinal Cord Injury Statistical Center, and disseminates its results through a variety of accessible formats and venues for both 

professionals and persons with SCI and their families. 
NIDRR Program Directory FY 2012 - Health and Function

2-28

Spinal Cord Injury Model Systems 

California 

Southern California Spinal Cord Injury Model System at Rancho Los Amigos National 

Rehabilitation Center 

Rancho Los Amigos National Rehabilitation Center 

Los Amigos Research and Education Institute 

7601 East Imperial Highway 

Downey, CA 90242 

scims@larei.org 

www.rancho.org; www.larei.org

Principal Investigator: Mindy L. Aisen, MD; Yaga Szlachcic, MD; Sara Mulroy, PhD; Philip S. 

Requejo, PhD 

Public Contact: 562/401-7541; Fax: 562/803-5569 

Project Number: H133N110018 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 11 $463,000; FY 12 $463,000; FY 13 $463,000; FY 14 $463,000; FY 15 

$463,000

Abstract: The overarching objective of the Southern California Spinal Cord Injury Model System 

(SCIMS) at Rancho Los Amigos National Rehabilitation Center (Rancho) is to generate new knowledge 

that directly contributes to improving the health and function, and community participation for persons 

with spinal cord injury (SCI). This project includes four integrated categories of effort each led by a 

management team: (1) comprehensive service delivery, (2) participation in the National Spinal Cord 

Injury Database, (3) site-specific research, and (4) collaborative research module(s). The site-specific 

research project uses a longitudinal randomized clinical trial to identify whether a home-based intervention that was demonstrated to be effective at reducing chronic shoulder pain in persons with SCI could 

be used as a preventative program to decrease the rate of shoulder pain onset. Additionally, the project 

tests whether a more interactive version of the prevention program would also enhance community participation and self-efficacy for exercise engagement, in addition to further lowering the rate of shoulder 

pain onset. 
NIDRR Program Directory FY 2012 - Health and Function

2-29

Spinal Cord Injury Model Systems 

Colorado 

The Rocky Mountain Regional Spinal Injury System 

Craig Hospital 

3425 South Clarkson Street 

Englewood, CO 80113 

susie@craighospital.org 

www.craighospital.org/Research/SCIMain.asp 

Principal Investigator: Susan Charlifue, PhD; Daniel P. Lammertse, MD; 303/789-8220 

Public Contact: Susan Charlifue, PhD 303/789-8306 (V); 303/789-8575 (TTY); Fax: 303/789-8441 

Project Number: H133N110006 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 11 $483,127; FY 12 $482,270; FY 13 $483,438; FY 14 $482,985; FY 15 

$482,484

Abstract: The Rocky Mountain Regional Spinal Injury System (RMRSIS) is well-established, progressive, and offers state-of-the art acute trauma, rehabilitation, and follow-up throughout the lives of people 

with spinal cord injury (SCI). RMRSIS goals are to: (1) implement a program of research focusing on 

the immediate and long-term health, function, community living, and participation of people with SCI; 

(2) continually improve its existing and well-integrated, comprehensive lifetime system of care for 

people with SCI; and (3) continue exemplary participation in the National SCI Database. A site-specific 

research study tests a group intervention aimed at improving self-efficacy for people with SCI. The 

RMRSIS participates in collaborative research modules with other Model Systems in both lead and support capacities. RMRSIS includes two Level I trauma centers with specialized acute neurotrauma care 

facilities (St. Anthony Hospital and Swedish Medical Center) and the rehabilitation and lifetime followup services of Craig Hospital. 
NIDRR Program Directory FY 2012 - Health and Function

2-30

Spinal Cord Injury Model Systems 

Florida 

South Florida Regional Spinal Cord Injury Model System 

University of Miami 

School of Medicine 

1120 NW 14th Street, Suite 958 

Miami, FL 33136 

www.sci.med.miami.edu/index.asp 

Principal Investigator: Diana D.Cardenas, MD; Larry Brooks, PhD; Mark Nash PhD

Public Contact: Jesus Sanchez Reyes 305/243-9516; Fax: 305/243-4650 

Project Number: H133N110003 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 11 $444,000; FY 12 $444,000; FY 13 $444,000; FY 14 $444,000; FY 15 

$444,000

Abstract: The South Florida Spinal Cord Injury System (SFSCIS) serves a high volume of patients with 

spinal cord injury (SCI) providing comprehensive rehabilitation services specifically designed to meet 

their needs. The clinical components of the SFSCIS include in-patient rehabilitation at Jackson Memorial Rehabilitation Hospital, vocational services, community and job placement, and long-term community 

follow-up and health maintenance. Project research includes: (1) a longitudinal study of the development 

of shoulder pain/pathology during the first year after injury using quantitative ultrasound (QUS), and (2) 

a randomized controlled trial of an exercise intervention using QUS as a biologic marker. The goal is to 

improve outcomes in the preservation or restoration of function following SCI. Additionally, this project contributes to the National Spinal Cord Injury Database; utilizes culturally appropriate methods of 

education, training, and outreach throughout the care system; and includes a comprehensive evaluation 

program. 
NIDRR Program Directory FY 2012 - Health and Function

2-31

Spinal Cord Injury Model Systems 

Georgia 

Southeastern Regional Spinal Cord Injury Model System at Shepherd Center 

Shepherd Center, Inc. 

Crawford Research Institute 

2020 Peachtree Road Northwest 

Atlanta, GA 30309-1465 

lesley_hudson@shepherd.org 

www.shepherd.org 

Principal Investigator: David F. Apple, Jr., MD; Lesley M. Hudson; 404/350-7582 

Public Contact: Lesley M. Hudson 404/350-7591; Fax: 404/355-1826 

Project Number: H133N110005 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 11 $483,500; FY 12 $483,499; FY 13 $483,499; FY 14 $483,500; FY 15 

$483,500

Abstract: This Model System conducts research and training activities provide a comprehensive, integrated continuum of pre-hospital, medical, surgical, and rehabilitation services to persons with acute and 

chronic spinal cord injury (SCI). The current project includes four comprehensive elements: (1) continued management of a large model of service delivery for individuals with a diagnosis of traumatic SCI 

in the Southeastern United States, from point of injury through lifetime follow-up (500 SCI admissions 

annually); (2) comprehensive and timely collection of data on subjects who meet the inclusion criteria 

in three categories: Form I (inpatient hospitalization, 125 new subjects annually); Form II (longitudinal 

collection at 1,5,10, 15, 20, 25, and 30 years post-injury, 600 subjects followed annually); and Registry 

(demographics only, 200 new subjects annually); (3) two site specific research project titled: “Evaluation 

of an Improved Method to Assess and Follow the Recovery of Motor Control in SCI” and “A Longitudinal Study of Gainful Employment 10 Years After SCI Onset: Comparisons of Those Who Do And Do 

Not Return To The Pre-Injury Employer”; and (4) participation in one or more modular research projects. 
NIDRR Program Directory FY 2012 - Health and Function

2-32

Spinal Cord Injury Model Systems 

Illinois 

Midwest Regional Spinal Cord Injury Care System (MRSCIS) 

Rehabilitation Institute of Chicago (RIC) 

345 East Superior Street, Room 1146 

Chicago, IL 60611-2654 

www.ric.org/research/centers/MidwestRegionalSpinalCordInjuryCareSystem/MRSCICS.aspx 

Principal Investigator: David Chen, MD 

Public Contact: 312/238-0764

Project Number: H133N060014 

Start Date: October 01, 2006 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 06 $484,000; FY 07 $484,000; FY 08 $484,000; FY 09 $482,162; FY 10 

$467,189; FY 11 (No-cost extension through 9/30/2012); FY 12 (No-cost extension through 9/30/2013)

Abstract: The Spinal Cord Injury Rehabilitation Program at the Rehabilitation Institute of Chicago 

and the Acute Spinal Cord Injury Program at Northwestern Memorial Hospital demonstrate the ongoing, comprehensive, multidisciplinary services that are provided to individuals with spinal cord injury 

(SCI) which allow these individuals to optimize their rehabilitation outcomes and enhance their ability 

to return to productive, independent living in the community. In order to contribute to the improvement 

of outcomes for persons with SCI, the Midwest Regional Spinal Cord Injury Care System (MRSCIS) 

conducts two site-specific research projects: (1) Development of Low-Cost Devices to Increase Delivery 

of Intensive Treadmill Training, and (2) Disparities in Access to and Outcomes of Rehabilitation Care 

for Medicare and Medicaid Beneficiaries with Spinal Cord Injury. In addition, the project includes collaboration on one research project, Assistive Technology for Mobility Module. MRSCIS has the capacity to enroll 140 individuals from culturally diverse backgrounds with new spinal cord injuries annually 

into the National Spinal Cord Injury Statistical Center, and collect follow-up data on individuals enrolled 

between 1973 and 2000. 
NIDRR Program Directory FY 2012 - Health and Function

2-33

Spinal Cord Injury Model Systems 

Illinois 

Midwest Regional Spinal Cord Injury Care System (MRSCIS) 

Rehabilitation Institute of Chicago (RIC) 

345 East Superior Street, Room 1146 

Chicago, IL 60611 

www.ric.org/research/centers/MidwestRegionalSpinalCordInjuryCareSystem/MRSCICS.aspx 

Principal Investigator: Allen W. Heinemann, PhD; David Chen, MD

Public Contact: 312/238-0764; Fax: 312/238/0869 

Project Number: H133N110014 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 11 $483,127; FY 12 $482,270; FY 13 $482,438; FY 14 $482,985; FY 15 

$482,484

Abstract: The Midwest Regional Spinal Cord Injury Care System (MRSCIS) provides comprehensive, 

multi-disciplinary medical and rehabilitation care to persons with spinal cord injury (SCI) from the site 

of injury to community reintegration. The objectives of the MRSCICS are to (1) provide a comprehensive continuum of care for persons with SCI, (2) contribute to assessment of long-term outcomes by 

enrolling 80 subjects per year into the national SCI database, (3) conduct one site-specific study, (4) 

disseminate research findings to various stakeholders in an effective and timely manner, (5) collaborate 

effectively with the Model System Knowledge Translation Center, and (6) involve individuals with disabilities in research and dissemination activities. The site-specific study, Mobility, Activity and Participation in Spinal Cord Injury (MAPS), evaluates a novel intervention to enhance the participation and 

community living outcomes of persons with SCI. The amount of daily physical activity is a primary determinant of self-reported and clinical measures of activity and participation, and quality of life. Specific 

exercise interventions can improve activity limitations and participation restrictions, including increased 

walking speed, metabolic capacity and efficiency, and self-reported participation. 
NIDRR Program Directory FY 2012 - Health and Function

2-34

Spinal Cord Injury Model Systems 

Kentucky 

Frazier Rehabilitation and Neuroscience Spinal Cord Injury Model System (FRNSCIMS) 

University of Louisville Research Foundation, Inc 

Department of Neurosurgery 

220 Abram Flexner Way, Suite 1506 

Louisville, KY 40202 

Principal Investigator: Daniel E. Graves, PhD; Susan Harkema, PhD; Daryl Kaelin, MD

Public Contact: Project coordinator 502/582-7443

Project Number: H133N110007 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 11 $443,999; FY 12 $443,999; FY 13 $443,999; FY 14 $443,999; FY 15 

$443,994

Abstract: Frazier Rehabilitation and Neuroscience Spinal Cord Injury System (FRNSCIS) provides 

comprehensive, individualized care at all stages and levels of recovery, in all rehabilitation modalities, 

and across the life span of its patients with spinal cord injury (SCI). It uses a recovery model of care, 

state-of-the art technologies, and an integrated team approach to maximize functional recovery and 

reintegration into the community for the individual who has experienced an SCI. Project objectives are 

to: (1) provide an integrated multidisciplinary system of rehabilitation care specifically designed to meet 

the needs of individuals with SCI; (2) engage in an active research program that seeks to identify innovative evidence-based approaches to treating SCI and to move research findings into rehabilitation and 

clinical settings including participating in a collaborative module and conducting a site-specific research 

project, titled Baclofen with Locomotor Training: The Effect on Function and Neuroplasticity in Chronic 

Incomplete Spinal Cord Injury, which examines the impact of the antispasticity medication baclofen on 

locomotion in chronic incomplete SCI in a prospective, controlled, randomized study; and (3) enroll at 

least 30 subjects per year in the Spinal Cord Injury Model Systems database. 
NIDRR Program Directory FY 2012 - Health and Function

2-35

Spinal Cord Injury Model Systems 

Massachusetts 

Spaulding-Harvard Spinal Cord Injury Model System 

Spaulding Rehabilitation Hospital 

125 Nashua Street 

Boston, MA 02114 

www.sh-sci.org 

Principal Investigator: Leslie R. Morse, DO; Ross D. Zafonte, DO

Public Contact: 617/573-2913

Project Number: H133N110010 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 11 $444,000; FY 12 $444,000; FY 13 $444,000; FY 14 $444,000; FY 15 

$444,000

Abstract: The Spaulding-Harvard Spinal Cord Injury System is a comprehensive network of care 

spanning from preventative programs and emergency services to outpatient care with a special focus 

on community reintegration and vocational rehabilitation. Clinical and investigative activities are directed to developing evidence-based rehabilitation interventions and clinical practice guidelines through 

spinal cord injury (SCI) research. The project develops and improves its multidisciplinary system of 

rehabilitation care designed specifically to meet the needs of individuals with SCI, contribute to the SCI 

model systems national database and facilitate the longitudinal assessment of long term SCI outcomes, 

and contribute to improved long term SCI outcomes by conducting a site-specific research project and 

participating in a collaborative research project. A site-specific research project seeks to use transcranial 

Direct Current Stimulation technology to treat sublesional neuropathic pain following SCI. 
NIDRR Program Directory FY 2012 - Health and Function

2-36

Spinal Cord Injury Model Systems 

Massachusetts 

NERSCIC: Improving the Lives of People with SCI Across the Lifespan Through Innovative 

Science and Technology 

Boston University Medical Center 

Department of Rehabilitation Medicine 

Talbot Building, T5W

715 Albany Street

Boston, MA 02118 

bethlyn.houlihan@bmc.org 

www.bmc.org/spinalcordinjurycenter/research.htm 

Principal Investigator: Steve Williams, MD; Alan Jette, PT, PhD; 617/638-7911 (Williams); 617/638-

1985 (Jette)

Public Contact: Bethlyn Houlihan 866/607-1804; 617/638-7314; Fax: 617/638-7303 

Project Number: H133N120002 

Start Date: October 01, 2012 

Length: 48 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 12 $463,000; FY 13 $463,000; FY 14 $463,000; FY 15 $463,000

Abstract: The New England Regional Spinal Cord Injury Center (NERSCIC) conducts research and 

clinical activities to improve the health and function of people with spinal cord injury (SCI). This Model 

System is a partnership among Boston University Medical Center in Boston, Gaylord Hospital in Wallingford, CT, and Hospital for Special Care in New Britain, CT. The objectives of this project are to: (1) 

improve the health and function of people with SCI by expanding the New England Standards of Care 

(NESoC) network, in concert with regional dissemination and technical support, especially to health professionals serving vulnerable groups; (2) employ innovative technology to improve health and function 

across the lifespan, especially for the most vulnerable, through better access to care and better outcome 

measures, building upon our successful research to date; (3) translate and disseminate state-of-the-art 

knowledge, measures, and resources for consumers and professionals on both a regional and national 

level to improve function and prevent secondary conditions, in collaboration with the Model Systems 

Knowledge Translation Center (MSKTC); and (4) empower and engage the SCI community across the 

lifespan in all of our clinical, educational, and research activities, especially the most vulnerable groups. 

NERSCIS includes the following projects and activities: My Care/My Call, an automated health care 

self-advocacy training for people with SCI (site-specific project #1); Missing Links: Assessing Function Across the Lifespan in Persons with SCI (site-specific project #2), which utilizes computer adaptive technology (CAT) to develop a mechanism to assess the functional abilities of children with SCI 

across the lifespan; the New England Standards of Care (NESoC) training webcasts; and the NESoC, a 

comprehensive set of clinical standards to improve the management of patients with SCI, based on best 

practices. 
NIDRR Program Directory FY 2012 - Health and Function

2-37

Spinal Cord Injury Model Systems 

Michigan 

University of Michigan Spinal Cord Injury Model System 

University of Michigan 

Department of Physical Medicine and Rehabilitation 

300 North Ingalls, Room NI2A09 

Ann Arbor, MI 48109-5491 

model.sci@umich.edu 

www.med.umich.edu/pmr/modelsci 

Principal Investigator: Anthony Chiodo, MD; Denise G. Tate, PhD

Public Contact: Martin Forchheimer; Colleen Bouton; 734/763-0971; Fax: 734/936-5492 

Project Number: H133N110002 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 11 $457,000; FY 12 $457,000; FY 13 $456,263; FY 14 $456,717; FY 15 

$456,829

Abstract: The University of Michigan Spinal Cord Injury Model System (UM-SCIMS) conducts research, information dissemination, education, and training to improve the lives of people with SCI. This 

system also provides comprehensive rehabilitation and community participation services to those with 

SCI admitted to the University Hospital, part of the University of Michigan Health System. The UMSCIMS includes two integrated research studies focusing on factors related to bladder and bowel complications following injury and their impact on quality of life. While the first study provides a conceptual 

framework for identifying mechanisms by which these factors impact quality of life, the second study 

focuses on how to prevent such complications by testing an intervention: a self-management program 

developed exclusively for those with SCI. Dissemination efforts include the development of products 

related to the two studies in collaboration with the Model Systems Knowledge Translation Center, SCI 

Lecture Series, consumer briefs, newsletters, website updates, and community outreach activities utilizing a network of State and local community partners. 
NIDRR Program Directory FY 2012 - Health and Function

2-38

Spinal Cord Injury Model Systems 

New Jersey 

Northern New Jersey Spinal Cord Injury System 

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC) 

1199 Pleasant Valley Way 

West Orange, NJ 07052-1499 

rbyrne@kesslerfoundation.org 

kesslerfoundation.org/researchcenter/spinalcordinjury/modelsyste ms.php 

Principal Investigator: Trevor Dyson-Hudson, MD 

Public Contact: Rachel Byrne 973/324-3567; Fax: 973/243-3527 

Project Number: H133N110020 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 11 $456,998; FY 12 $456,999; FY 13 $456,999; FY 14 $456,999; FY 15 

$456,999

Abstract: The Northern New Jersey Spinal Cord Injury System (NNJSCIS) provides a comprehensive 

continuum of state-of-the-art care for persons with spinal cord injury (SCI) and their families from the 

time of injury through rehabilitation and return to the community. Research and clinical activities at 

NNJSCIS include: a collaborative module with an associated model SCI system; a site-specific study to 

test a novel combination therapy using dalfampridine—a drug recently approved to improve walking in 

patients with multiple sclerosis—with a standardized program of locomotor training—a rehabilitative 

intervention that has improved walking and other functional outcomes in persons with SCI; and active 

communication with the SCI consumer and research communities through web and social media, consumer and professional conferences, newsletters, professional publications, and scientific presentations. 

The NNJSCIS is a cooperative effort of the Kessler Foundation Research Center, the Kessler Institute 

for Rehabilitation, the University of Medicine and Dentistry of New Jersey-New Jersey Medical School, 

and University Hospital. 
NIDRR Program Directory FY 2012 - Health and Function

2-39

Spinal Cord Injury Model Systems 

Pennsylvania 

Regional Spinal Cord Injury Center of the Delaware Valley 

Thomas Jefferson University 

Regional Spinal Cord Injury Center of the Delaware Valley 

132 South 10th Street; 375 Main Building 

Philadelphia, PA 19107-5244 

marilyn.owens@jefferson.edu 

www.spinalcordcenter.org 

Principal Investigator: Ralph J. Marino, MD 

Public Contact: Marilyn Owens, RN 215/955-6579; Fax: 215/955-5152 

Project Number: H133N110021 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 11 $476,000; FY 12 $476,000; FY 13 $476,000; FY 14 $476,000; FY 15 

$476,000

Abstract: The goal of the Regional Spinal Cord Injury Center of the Delaware Valley (RSCICDV) is 

to provide and evaluate a comprehensive program of coordinated patient care, education, and research 

activities for individuals who have sustained a traumatic spinal cord injury (SCI). Clinical activities are 

directed at promoting evidence-based practice, understanding the particular needs of the target population, and providing individualized lifetime care to persons with SCI. Research activities are designed to 

generate longitudinal data on impairment, activities, participation, and quality of life as part of the National Database, and to determine the effectiveness of an early pharmacological intervention to prevent 

loss of bone mass after SCI. Research and clinical activities include: a collaborative module with other 

model systems; an onsite, randomized, placebo-controlled clinical trial of intravenous zoledronic acid, 

a potent bisphosphonate, provided within two weeks of injury, on sublesional bone mass at the proximal femur, distal femur, and proximal tibia in persons with complete SCI; ethnographic interviews with 

older persons with SCI focusing on changing health needs, access to care, participation in life activities, 

and the changing experiences in assisting with the care of someone with a disability; and development of 

educational resources and offerings for patients, healthcare providers, and researchers, including online 

materials and training workshops in the use of outcome measures. 
NIDRR Program Directory FY 2012 - Health and Function

2-40

Spinal Cord Injury Model Systems 

Pennsylvania 

University of Pittsburgh Model Center on Spinal Cord Injury 

University of Pittsburgh 

UPMC Rehabilitation Institute 

1400 Locust Street, Building B, Suite 11516 

Pittsburgh, PA 15219 

greekk@upmc.edu 

www.upmc-sci.org; www.rehabmedicine.pitt.edu 

Principal Investigator: Michael L. Boninger, MD 412/648-6979 

Public Contact: Karen Greenwald, RN 412/232-7949; Fax: 412/232-7535 

Project Number: H133N110011 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 11 $457,000; FY 12 $457,000; FY 13 $457,000; FY 14 $457,000; FY 15 

$457,000

Abstract: The University of Pittsburgh Model Center on Spinal Cord Injury (UPMC-SCI) continues to 

investigate the relationship between transfer technique and markers of shoulder injury. The center utilizes previous research to develop transfer training material targeted at clinicians and people with spinal 

cord injury (SCI) and evaluates the impact of the training in a single-blind randomized controlled trial. 

During the previous funding cycle, the center led a successful module related to assistive technology 

(AT). This module found that wheelchair failures are increasingly prevalent and are disproportionately 

impacting individuals from minority backgrounds. Additionally, it was found that wheelchair users lack 

the wheelchair skills needed for full participation. The center continues the AT module work allowing 

further investigation of the impact of recent Centers for Medicare and Medicaid Services changes, such 

as competitive bidding, on AT quality. In addition, specific interventions as part of a new module address 

both AT quality and wheelchair skills. UPMC-SCI continues its heavy focus on knowledge translation so 

that this research can lead to changes in clinical care. 
NIDRR Program Directory FY 2012 - Health and Function

2-41

Spinal Cord Injury Model Systems 

Texas 

Texas Model Spinal Cord Injury System 

The Institute for Rehabilitation and Research (TIRR) 

1333 Moursund Street 

Houston, TX 77030-3408 

dgraves@bcm.tmc.edu 

Principal Investigator: William Donovan, MD; Daniel Graves, PhD

Public Contact: Daniel Graves, PhD 713/797-5946 (V); 713/797-5790 (TTY); Fax: 713/797-5982 

Project Number: H133N060003 

Start Date: October 01, 2006 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 06 $464,417; FY 07 $464,417; FY 08 $464,417; FY 09 $464,417; FY 10 

$464,417; FY 11 (No-cost extension through 09/30/2012); FY 12 (No-cost extension through 

01/31/2013)

Abstract: The Texas Model Spinal Cord Injury System (TMSCIS) provides services along the entire 

continuum of care for spinal cord injury (SCI) from emergency medical service to long-term follow-up 

and management of secondary conditions. The TMSCIS includes a site-specific research project that is 

designed to provide high level evidence of the efficacy of a novel treatment to prevent bladder complications. The project is a randomized, double-blind, placebo controlled, parallel groups investigation of 

the effects of Botulinum toxin A treatment of detrusor external sphincter dyssynergia (DESD) during 

early spinal cord injury. Many patients with SCI develop neurogenic bladder dysfunction associated 

with detrusor hyperreflexia and DESD that can lead to long-term complications in up to 50 percent of 

patients. These complications include hydronephrosis, vesicoureteral reflux, nephrolithiasis, sepsis, renal 

insufficiency or failure, and even death. This investigation is intended to determine if the prevention of 

DESD in the early phase of recovery can prevent some of these complications. In addition, the TMSCIS 

includes a module designed to develop an outcome measure of trunk and postural control to be utilized 

in activity-based therapy programs like locomotor training. The outcomes of large scale clinical trials 

of locomotor training highlight the need for outcome measures that are designed to capture changes 

brought about by translational research that may not have been necessary for more traditional therapy 

programs. This scale development project incorporates item response theory methods as well as reliability and validity investigations in a minimum of four model systems. 
NIDRR Program Directory FY 2012 - Health and Function

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Spinal Cord Injury Model Systems 

Washington 

Northwest Regional Spinal Cord Injury System 

University of Washington 

Department of Rehabilitation Medicine 

Box 356490 

Seattle, WA 98195-6490 

scirehab@u.washington.edu 

sci.washington.edu 

Principal Investigator: Charles H. Bombardier, PhD; Stephen P. Burns, MD; Jeanne M. Hoffman, PhD; 

206/731-3665 

Public Contact: Cynthia Salzman, MHA 206/685-3999; Fax: 206/685-3244 

Project Number: H133N110009 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 11 $463,000; FY 12 $463,000; FY 13 $463,000; FY 14 $463,000; FY 15 

$463,000

Abstract: The University of Washington’s Northwest Regional Spinal Cord Injury System (NWRSCIS) 

provides a comprehensive, integrated continuum of pre-hospital, medical, surgical, and rehabilitation 

services to persons with acute and chronic SCI. Goals for this model system are to (1) contribute an average of 50 new subjects per year to the Spinal Cord Injury Model Systems national database; (2) exceed 

rigorous benchmark standards for subject recruitment and retention; (3) conduct high quality research 

that contributes to improved outcomes and better evidence-based rehabilitation for people with SCI and 

is of sufficient quality that it improves evidence based rehabilitation and clinical guidelines; and (4) 

enhance services to various consumers and stakeholders, especially racial/ethnic minority persons, low 

income, and other traditionally underserved groups. A site-specific study uses an innovative “real world” 

trial designed to test the effectiveness of a collaborative care approach to improving outpatient treatment 

for inactivity, chronic pain, and depression. This is a single-blind, randomized controlled trial comparing collaborative care to usual care. The primary outcome measure is overall quality of life. Secondary 

outcomes are increased physical activity, reduced pain intensity and depression severity, and cost-effectiveness. 
NIDRR Program Directory FY 2012 - Health and Function

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Traumatic Brain Injury Model Systems 

Alabama 

University of Alabama at Birmingham (UAB) Traumatic Brain Injury Model System (UAB 

TBIMS) 

University of Alabama at Birmingham 

Spain Rehabilitation Center; Physical Medicine and Rehabilitation 

619 - 19th Street South, SRC 529 

Birmingham, AL 35249-7330 

novack@uab.edu 

www.uab.edu/tbi 

Principal Investigator: Thomas A. Novack, PhD 

Public Contact: 205/934-3283

Project Number: H133A070039 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 07 $434,398; FY 08 $434,399; FY 09 $434,397; FY 10 $434,398; FY 11 

$434,397; FY 12 (No-cost extension through 9/30/2013)

Abstract: This project provides rehabilitation services specifically designed to meet the special needs of 

individuals with traumatic brain injury (TBI) through a multidisciplinary, comprehensive model system 

which spans the clinical continuum from emergency services through rehabilitation and community reentry. The project includes one collaborative research module and one in-house research project, aimed 

at improving the health and function, as well as the community participation, of the individuals with 

TBI. The collaborative research module involves examination of the risks and consequences of weight 

gain after TBI, which has never been explored in depth. The in-house research project focuses on an inhome training program to improve visual perceptual speed that could impact return to driving. 
NIDRR Program Directory FY 2012 - Health and Function

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Traumatic Brain Injury Model Systems 

Alabama 

UAB Traumatic Brain Injury Model System 

University of Alabama at Birmingham 

Spain Rehabilitation Center

Physical Medicine and Rehabilitation 

619 - 19th Street South, SRC 529 

Birmingham, AL 35249-7330 

novack@uab.edu 

www.uab.edu/tbi 

Principal Investigator: Thomas A. Novack, PhD 

Public Contact: 205/934-3283

Project Number: H133A120096 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 12 $447,500; FY 13 $447,500; FY 14 $447,500; FY 15 $447,500; FY 16 

$447,500

Abstract: This project provides rehabilitation services specifically designed to meet the special needs of 

individuals with traumatic brain injury (TBI) through a multidisciplinary, comprehensive model system 

which spans the clinical continuum from emergency services through rehabilitation and community 

re-entry. Research activities include data collection for the Traumatic Brain Injury Model System national database and a site-specific research project aimed at addressing excessive weight gain following 

TBI, tailoring an established, evidence-based program that has proved successful with other groups. 

In addition, the TBI Model System disseminates research findings in the region and nationally through 

seminars, presentations at professional and consumer meetings, publishing in professional and consumer 

journals, and collaboration with the Model Systems Knowledge Translation Center.
NIDRR Program Directory FY 2012 - Health and Function

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Traumatic Brain Injury Model Systems 

California 

Northern California Traumatic Brain Injury Model System of Care 

Santa Clara Valley Medical Center (SCVMC) 

Rehabilitation Research Center 

751 South Bascom Avenue 

San Jose, CA 95128 

stephanie.hayner@hhs.sccgov.org; jerry.wright@hhs.sccgov.org 

www.tbi-sci.org 

Principal Investigator: Stephanie Hayner, PhD; Jeffrey Englander, MD

Public Contact: Stephanie Hayner, Director of Rehabilitation Research; Jerry Wright; 408/793-6446; 

408/793-6433; Fax: 408/793-6434 

Project Number: H133A070038 

Start Date: October 07, 2007 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 07 $426,720; FY 08 $426,720; FY 09 $426,720; FY 10 $426,720; FY 11 $426,720; 

FY 12 (No-cost extension through 6/30/2013)

Abstract: This project conducts research with a focus on fatigue in individuals with traumatic brain 

injury (TBI). Current studies have identified a strong association of fatigue with sleep disorders, depression, pain, and cognitive challenges; the prevalence of pituitary dysfunction is high in this group as well 

but the level of dysfunction is not proportional to levels of fatigue. This site specific research effort is a 

prospective, randomized, single-blind crossover study that evaluates the impact of a graduated physical 

activity program on fatigue and related factors of depression, sleep quality/daytime drowsiness, cognitive function, and general health measures. 
NIDRR Program Directory FY 2012 - Health and Function

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Traumatic Brain Injury Model Systems 

Colorado 

National Data and Statistical Center for the TBI Model Systems 

Craig Hospital 

Research Department 

3425 South Clarkson Street 

Englewood, CO 80113 

charrison-felix@craighospital.org 

www.tbindsc.org 

Principal Investigator: Cynthia Harrison-Felix, PhD 

Public Contact: 303/789-8565; Fax: 303/789-8441 

Project Number: H133A110006 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 11 $625,000; FY 12 $625,000; FY 13 $625,000; FY 14 $625,000; FY 15 $625,000

Abstract: The Traumatic Brain Injury Model Systems National Data and Statistical Center (NDSC) 

provides innovative technologies, training, and resources to the Traumatic Brain Injury Model Systems 

(TBIMS). Building upon a comprehensive system of data management, communication technologies, 

and operating procedures that emulate the best practices of clinical research organizations, the NDSC 

increases the rigor and efficiency of scientific efforts to longitudinally assess the experience of individuals with TBI and advance TBI rehabilitation. NDSC has nine project goals: (1) maintain the TBIMS 

National Database (NDB) providing for confidentiality, quality control, and data retrieval capabilities, 

using cost-effective and user-friendly technology; (2) provide training/technical assistance to TBIMS 

on subject retention, data collection procedures, data entry methods, appropriate use of study instruments, and monitoring data quality; (3) provide knowledge, training, and technical assistance to TBIMS 

on culturally appropriate methods of longitudinal data collection and participant retention; (4) provide 

statistical/methodological consultation to TBIMS; (5) implement a mechanism for continued follow-up 

data collection from defunded TBIMS; (6) collaborate with Spinal Cord Injury and Burn Data Centers 

and the Model Systems Knowledge Translation Center (MSKTC); (7) coordinate on research projects 

of mutual interest with NIDRR-funded projects; (8) involve individuals with disabilities in planning 

and implementing the research, training, and dissemination activities, and in evaluating its work; and 

(9) identify anticipated outcomes that are linked to stated grant objectives. NDSC introduces new innovations including public data access and reporting strategies; web-based data collectors training and 

certification system; technologies/resources to support the important work of the TBIMS committees, 

module studies, and special interest groups; advanced longitudinal analytic strategies, a Statistical Users 

Manual, and several proposed NDB analysis projects; new cultural competency resources and language 

translation services; collaboration with the MSKTC on a TBIMS exhibit and materials; a Technical Advisory Board; and new collaborative partnerships. The success of the project is assessed by five measurable outcome goals: (1) advance TBI rehabilitation by increasing the scientific rigor and utilization the 

TBIMS NDB/Modules, as measured by an increase in the annual rate of peer-reviewed journal articles 

that cite the TBIMS NDB/Modules as the primary source of research data; (2) maintain the TBIMS 
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NDB/Modules using cost-effective and user-friendly technologies as measured by user acceptance of 

new technologies/methodologies as indicated by annual customer evaluations; (3) ensure high-quality, 

reliable data in the TBIMS NDB/Modules by providing comprehensive technical support as measured 

by center quality support visit reports and data quality reports; (4) improve data collected from NDB 

participants of all racial/ethnic backgrounds as measured by an increase in the follow-up rate of minorities; and (5) enhance continuity of the TBIMS NDB by developing mechanisms/strategies for following 

participants enrolled by defunded centers as measured by improvement of follow-up rates of TBIMS 

NDB participants. 
NIDRR Program Directory FY 2012 - Health and Function

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Traumatic Brain Injury Model Systems 

Colorado 

The Rocky Mountain Regional Brain Injury Model System (RMRBIMS) 

Craig Hospital 

3425 South Clarkson Street 

Englewood, CO 80113-2899 

charrison-felix@craighospital.org 

www.craighospital.org/research/Projects.asp#TBI 

Principal Investigator: Cynthia Harrison-Felix, PhD 

Public Contact: 303/789-8565; Fax: 303/789-8441 

Project Number: H133A120032 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 12 $441,000; FY 13 $441,000; FY 14 $441,000; FY 15 $441,000; FY 16 

$441,000

Abstract: This project provides comprehensive, multidisciplinary services for individuals with traumatic brain injury (TBI) and conducts research that develops evidence-based rehabilitation interventions and 

clinical practice guidelines. The RMRBIMS conducts two site-specific, randomized controlled clinical 

trials. The first study, titled “Home-Based Virtual Reality Treatment for Chronic Balance Problems in 

Adults with TBI” evaluates a low-cost, home-based physical therapy program that incorporates the use 

of a commercially available virtual reality system aimed at increasing balance and community mobility, 

enhancing overall balance system function, reducing the risk of falls, maximizing treatment adherence, 

and improving participation in life activities for individuals with TBI who have exhausted their formal 

physical rehabilitation opportunities. The second study, titled “Improving Well-Being After TBI Through 

Structured Volunteer Activity” evaluates the efficacy of a novel intervention to facilitate successful 

volunteer placement following TBI, and examines the effect of structured altruistic volunteering upon 

well-being. In addition to these projects, the RMRBIMS participates in collaborative module research, 

participates in the TBI Model Systems National Database, and works with the Model Systems Knowledge Translation Center to disseminate research to the widest audience. 
NIDRR Program Directory FY 2012 - Health and Function

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Traumatic Brain Injury Model Systems 

Florida 

South Florida Traumatic Brain Injury Model System (SF-TBIMS) 

University of Miami 

PO Box 016960 (D-461) 

Miami, FL 33101 

DJGreene@med.miami.edu 

Principal Investigator: Douglas E. Johnson-Greene, PhD 

Public Contact: 305/243-8472; 305/243-4569; Fax: 305/243-4560 

Project Number: H133A120099 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 12 $427,188; FY 13 $503,526; FY 14 $426,780; FY 15 $426,484; FY 16 

$427,145

Abstract: This project provides rehabilitation services and research aimed at meeting the special needs 

of individuals with traumatic brain injury (TBI) through a coordinated, multidisciplinary, comprehensive 

TBI program. The project includes active participation and data collection for the TBI Model Systems 

national database, participation in collaborative modules, and two site-specific studies: (1) “Evaluation 

and Intervention of Sleep Disordered Breathing (SDB) In Persons with Traumatic Brain Injury,” and (2) 

“Evaluating Assessment Methods for Pain in Persons with Traumatic Brain Injury.” Activities of the SFTBIMS reflect an active partnership within the components of the University of Miami and Jackson Memorial Medical Center Health System (UM/JMMC) and Miami Healthsouth Rehabilitation Hospital, and 

between UM and community organizations such as the Brain Injury Association of Florida, The Florida 

Department of Health Brain and Spinal Cord Injury program, and the WellFlorida Council. In addition, 

the TBI Model System disseminates research findings in the region and nationally through seminars, 

presentations at professional and consumer meetings, publishing in professional and consumer journals, 

and collaboration with the Model Systems Knowledge Translation Center. 
NIDRR Program Directory FY 2012 - Health and Function

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Traumatic Brain Injury Model Systems 

Illinois 

Midwest Regional Traumatic Brain Injury Model System: Innovative Approaches to Improve 

Cognition, Function, and Community Living 

Rehabilitation Institute of Chicago (RIC) 

345 East Superior Street 

Chicago, IL 60611-2654 

kkomai@ric.org 

www.ric.org/MRTBIMS 

Principal Investigator: Elliot J. Roth, MD 312/238-4637 

Public Contact: Kwaben Komai, Project Manager 312/238-0720; Fax: 312/238-1417 

Project Number: H133A080045 

Start Date: October 01, 2008 

Length: 48 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 08 $418,139; FY 09 $418,528; FY 10 $418,143; FY 11 $418,395; FY 12 (No-cost 

extension through 1/31/2013)

Other Funding: FY 09 Rehabilitation Institute of Chicago

Abstract: The Midwest Regional Traumatic Brain Injury Model System (MRTBIMS) accomplishes 

several important objectives in support of an interdisciplinary, multidimensional center focused on 

providing and improving care for people with traumatic brain injury (TBI). MRTBIMS establishes a 

coordinated, multilevel, interdisciplinary system of care for people with TBI, including pre-hospital, 

emergency, acute, long-term acute, intensive rehabilitation, and community care. This continuum of 

care is provided at Northwestern Memorial Hospital, RML Specialty Hospital, and the Rehabilitation 

Institute of Chicago and its system of care. Data is submitted on at least 35 TBI patients per year to the 

National TBI Database. Research plans include implementation of two site-specific research projects, 

which consist of clinical trials on the effectiveness of acupuncture to improve sleep in TBI patients, and 

on the effectiveness of a virtual reality robotics program to improve attention and concentration in TBI 

patients. The Center is engaged in dissemination of educational and other materials on TBI to a variety 

of target audiences, including persons with TBI and their families, professionals who care for patients 

with TBI, and the public, collaborating with the Brain Injury Association of Illinois and other NIDRRfunded centers as appropriate. 
NIDRR Program Directory FY 2012 - Health and Function

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Traumatic Brain Injury Model Systems 

Indiana 

Brain Research in Aggression and Irritability Network (BRAIN): Building Evidence-Based 

Approaches to Managing Traumatic Brain Injury 

Indiana University 

Rehabilitation Hospital of Indiana 

4141 Shore Drive 

Indianapolis, IN 46254 

flora.hammond@rhin.com 

Principal Investigator: Flora M. Hammond, MD 

Public Contact: 317/329-2106; Fax: 704/355-0709 

Project Number: H133A120035 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 12 $427,500; FY 13 $427,500; FY 14 $427,500; FY 15 $427,500; FY 16 

$427,500

Abstract: This project aims to further the evidence for improving clinical management and outcomes 

for irritability and aggression in individuals with traumatic brain injury (TBI). BRAIN is a comprehensive model service delivery and research system serving individuals with TBI. The System includes 

prevention and emergency medical services, intensive and acute care, comprehensive medical rehabilitation, long-term follow-up, community reintegration, and vocational rehabilitation. The project includes 

two site-specific studies: (1) Buspirone for the treatment of chronic post-TBI irritability and aggression: 

A 91-day single-site, flexible-dose, parallel group, randomized, double-blind, placebo-controlled trial; 

(2) Preliminary development of the Aggression and Irritability Impact Measure: Study 2 works towards 

the development of a standardized measure to evaluate the impact of irritability and aggression on various aspects of functioning and participation. Measuring impact is a novel, yet complementary approach 

to existing measures that evaluate the expression of irritability and aggression. In addition, the TBI 

Model System disseminates research findings in the region and nationally through seminars, presentations at professional and consumer meetings, publishing in professional and consumer journals, and 

collaboration with the Model Systems Knowledge Translation Center. 
NIDRR Program Directory FY 2012 - Health and Function

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Traumatic Brain Injury Model Systems 

Massachusetts 

Spaulding-Harvard Traumatic Brain Injury Model System 

Spaulding Rehabilitation Hospital 

125 Nashua Street 

Boston, MA 02114 

jgiacino@partners.org 

Principal Investigator: Joseph T. Giacino, PhD 

Public Contact: 617/573-2757; Fax: 732/632-1584 

Project Number: H133A120085 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 12 $430,100; FY 13 $430,100; FY 14 $430,100; FY 15 $430,100; FY 16 

$430,100

Abstract: This project provides comprehensive, multidisciplinary services for individuals with traumatic brain injury (TBI), and conducts neuroimaging research that favorably impacts persons with 

severe TBI, their families, and rehabilitation providers. The project contributes to the TBI Model System 

national database and monitors long-term functional outcomes. Research includes a site-specific study 

using novel neuroimaging technologies to reduce diagnostic error and facilitate restoration of communication in persons with post-traumatic disorders of consciousness. The project also contributes to 

improved long-term TBI outcomes by participating in collaborative, multi-site research. The TBI Model 

System disseminates research findings in the region and nationally through seminars, presentations at 

professional and consumer meetings, publishing in professional and consumer journals, and collaboration with the Model Systems Knowledge 
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Traumatic Brain Injury Model Systems 

Michigan 

Michigan Traumatic Brain Injury Model System (SEMTBIS) 

Wayne State University 

5057 Woodward Avenue, Suite 6402 

Detroit, MI 48202 

ckoviak@dmc.org 

www.semtbis.org 

Principal Investigator: Robin A. Hanks, PhD 313/745-9763 

Public Contact: Carole Koviak, RN 313/745-9737; Fax: 313/745-9854 

Project Number: H133A080044 

Start Date: October 01, 2008 

Length: 48 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 08 $438,074; FY 09 $437,676; FY 10 $437,855; FY 11 $438,138; FY 12 (No-cost 

extension through 6/30/2013)

Abstract: The Southeastern Michigan Traumatic Brain Injury System (SEMTBIS) focuses on the following major areas: research, education, clinical and systems analysis studies, collection and dissemination of data, and promotion of professional development for individuals with disabilities as well as their 

family members or caregivers. Two studies address enhancement of health and function of persons with 

traumatic brain injury (TBI). Projects evaluate the predictive validity of three newly developed brain 

magnetic resonance imaging techniques with respect to functional independence, level of disability, and 

neurobehavioral outcomes at one and two years post-injury; and examine the safety and efficacy of an 

antibiotic medication that is thought to positively influence neuroplasticity in the acute stages of recovery from TBI. SEMTBIS recruits, educates, and promotes professional development of individuals with 

disabilities as well as their family members or caregivers; with consumer involvement in the advisory 

board and as project staff. SEMTBIS continues to participate in clinical and systems analysis studies of 

the Traumatic Brain Injury Model Systems by collecting and contributing data to a uniform, standardized national database on patient characteristics, diagnoses, causes of injury, interventions, outcomes, 

and costs. Evaluation of these research projects and the overall operations of the SEMTBIS employs a 

multifaceted approach of quantifiable and objective procedures. 
NIDRR Program Directory FY 2012 - Health and Function

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Traumatic Brain Injury Model Systems 

Minnesota 

Mayo Clinic Traumatic Brain Injury Model System 

Mayo Clinic 

Mayo Clinic College of Medicine

Mayo Foundation for Medical Education and Research 

200 First Street 

Rochester, MN 55905 

bergquist.thomas@mayo.edu; brown.allen@mayo.edu 

www.mayo.edu/model-system 

Principal Investigator: Allen W. Brown, MD 507/255-3116 

Public Contact: Anne Moessner 507/255-3116; Fax: 507/255-7696 

Project Number: H133A070013 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 07 $423,590; FY 08 $423,590; FY 09 $423,590; FY 10 $423,590; FY 11 

$423,590; FY 12 (No-cost extension through 9/30/2012)

Abstract: The purpose of the Mayo Clinic Traumatic Brain Injury Model System (TBIMS) is to provide 

comprehensive, integrated, team-based rehabilitation care and education to individuals with traumatic 

brain injury (TBI), their families and significant others along the continuum of recovery, and to fill gaps 

in research knowledge and service delivery through clinical research that promotes full personal and social participation. The Mayo Clinic TBIMS conducts one site-specific project. This project, an Advocacy 

Training Clinical Trial (ATCT), targets the gap in knowledge concerning the most efficacious method 

of teaching effective self and system advocacy skills. The goal of the ATCT is to identify efficacious 

advocacy training methods using a randomized practical behavioral trial methodology in three Midwest 

states. Objectives of the ATCT are threefold: (1) develop TBI specific measures of advocacy activity, 

perceived control, and self efficacy; (2) implement, evaluate, and continuously improve upon the ATCT; 

and (3) assess the statewide impact of the ATCT on greater communities, public policy, systems change, 

and in the media. The ATCT is designed to establish a sustainable program of efficacious and effective 

advocacy training in the trial communities, and provide a model for implementation in other communities. 
NIDRR Program Directory FY 2012 - Health and Function

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Traumatic Brain Injury Model Systems 

Minnesota 

Mayo Clinic Traumatic Brain Injury Model System 

Mayo Clinic 

Mayo Clinic College of Medicine

Mayo Foundation for Medical Education and Research 

200 First Street 

Rochester, MN 55905 

bergquist.thomas@mayo.edu; brown.allen@mayo.edu 

www.mayo.edu/model-system 

Principal Investigator: Allen W. Brown, MD 

Public Contact: Anne Moessner 507/255-3116; Fax: 507/255-7696 

Project Number: H133A120026 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 12 $430,100; FY 13 $430,100; FY 14 $430,100; FY 15 $430,100; FY 16 

$430,100

Abstract: This project provides comprehensive, integrated, team-based rehabilitation to individuals with 

traumatic brain injury (TBI) and their families to promote full personal and societal participation, and to 

fill gaps in research knowledge and service delivery. The project includes a trial of CONNECT, a model 

of care that connects individuals hospitalized with TBI, their families, and their local health care providers remotely to specialized brain rehabilitation resources. CONNECT utilizes traditional (i.e. phone) 

and customized information and communications technology to increase system capacity and access to 

services for those in a broader geographic region. The goal of CONNECT is to test the extent to which a 

complex brain rehabilitation intervention delivered remotely improves participation outcomes and satisfaction compared to a matched group receiving usual care in their communities. In addition, this project 

contributes to the TBI Model Systems national database, participates in collaborative modules, and disseminates research findings in the region and nationally through seminars, presentations at professional 

and consumer meetings, publishing in professional and consumer journals, and collaboration with the 

Model Systems Knowledge Translation Center. 
NIDRR Program Directory FY 2012 - Health and Function

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Traumatic Brain Injury Model Systems 

New Jersey 

JFK-Johnson Rehabilitation Institute TBI Model System 

JFK Johnson Rehabilitation Institute 

2048 Oak Tree Road 

Edison, NJ 08820 

tbims@solarishs.org 

www.njrehab.org/research-training/tbi-model-system/ 

Principal Investigator: Keith D. Cicerone, PhD 

Public Contact: 732/906-2640; Fax: 732/906-9241 

Project Number: H133A070030 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 07 $419,921; FY 08 $419,921; FY 09 $419,921; FY 10 $419,921; FY 11 

$419,921; FY 12 (No-cost extension through 9/30/2013)

Abstract: This collaborative project examines the contribution of postacute rehabilitation to functional 

and psychosocial outcomes at one and two years after injury using multivariate analyses and causal 

modeling. This project tests a novel MRI (fMRI) protocol that is designed to reliably detect conscious 

awareness in patients who may be unable to execute behavioral signs of active cognitive processing, using a hierarchical stimulation paradigm that systematically assesses levels of cognitive processing in the 

auditory and visual systems. Site-specific research represents a sustained investigation of cerebral activation in patients with disorders of consciousness (DOC): vegetative state (VS) and minimally conscious 

state (MCS). At present, clinical judgment and experience guide diagnostic, prognostic, and treatment 

decisions for individuals with DOC. Prior research on functional MRI (fMRI) activation patterns suggests that patients in MCS retain the neural circuits for receptive language and visual processing. In light 

of provocative findings suggesting that cognitive processing may be maintained in patients who appear 

to be unconscious on bedside examination, the investigation is extended to individuals with VS as well 

as those in MCS. A collaborative module extends prior investigations of the effectiveness of specialized, post-acute brain injury rehabilitation. This project is driven by the question of how to characterize 

the course of post-acute brain injury rehabilitation, and its impact on the long term outcomes of people 

with brain injuries. Although there is increasing evidence that post-acute brain injury rehabilitation can 

improve functional outcomes after TBI, population-based outcome studies have generally not considered 

the influence of different pathways of post-acute rehabilitation on outcomes after TBI. A longitudinal, 

observational study characterizes post-acute rehabilitation in the TBI Model Systems, and examines the 

pathways of post-acute rehabilitation in relation to casemix variables, patterns of service utilization, barriers to service delivery, and participants’ perceived needs and satisfaction with treatment. 
NIDRR Program Directory FY 2012 - Health and Function

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Traumatic Brain Injury Model Systems 

New Jersey 

Northern New Jersey Traumatic Brain Injury System (NNJTBIS) 

Kessler Foundation 

Kessler Foundation Research Center 

1199 Pleasant Valley Way, Suite 70 

West Orange, NJ 07052 

tbi@kesslerfoundation.org 

www.kesslerfoundation.org/research/lab/modelsys.php 

Principal Investigator: Nancy D. Chiaravalloti, PhD 973/324-8440 

Public Contact: 973/324-8440; Fax: 973/324-8373 

Project Number: H133A070037 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 07 $423,590; FY 08 $423,590; FY 09 $423,590; FY 10 $423,590; FY 11 

$423,590; FY 12 (No-cost extension through 09/30/2013)

Abstract: The Northern New Jersey Traumatic Brain Injury System (NNJTBIS) conducts both a sitespecific research study and a collaborative research module. These projects, both related to ongoing 

NIH-funded studies, contribute to evidence-based rehabilitation interventions and quality of life measurement to improve the lives of individuals with traumatic brain injury (TBI), as follows: (1) An innovative, double-blind, randomized controlled trial of a cognitive rehabilitation intervention utilizing a 

proven methodology shown to be effective with the multiple sclerosis population; and (2) a collaborative 

module that adapts, develops, and validates an innovative quality-of-life outcome measurement system 

for use in TBI intervention research. Each of these projects has been subjected to initial pilot testing to 

assure the applicability and feasibility of the methodology. The evaluation of this project is guided by a 

multifaceted approach, which uses a highly quantifiable, objective means of evaluating progress. This is 

supplemented by a Community Advisory Board, NNJTBIS Steering Committee, and an external Scientific Advisory Board, which provide feedback on a quarterly, annual, and bi-annual basis, respectively. 

In addition, project management staff meets internally on a regular basis to review data management and 

data quality issues and assure effective communication with Kessler Institute for Rehabilitation (KIR) 

and staff from the trauma centers. Finally, the NNJTBIS coordinates with the NIDRR-funded Model 

Systems Knowledge Translation Center to provide scientific results and information for dissemination 

to clinical and consumer audiences. The NNJTBIS is a cooperative effort of the Kessler Foundation 

Research Center, KIR, and trauma centers from the University of Medicine and Dentistry of New Jersey - The New Jersey Medical School (UMDNJ-NJMS), Hackensack University Hospital, Morristown 

Memorial Hospital, and St. Joseph’s Hospital. 
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Traumatic Brain Injury Model Systems 

New Jersey 

Northern New Jersey Traumatic Brain Injury System (NNJTBIS) 

Kessler Foundation 

Kessler Foundation Research Center 

1199 Pleasant Valley Way, Suite 70 

West Orange, NJ 07052 

tbi@kesslerfoundation.org 

www.kesslerfoundation.org/research/lab/modelsys.php 

Principal Investigator: Nancy D. Chiaravalloti, PhD 

Public Contact: 973/324-8440; Fax: 973/324-8373 

Project Number: H133A120030 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 12 $441,000; FY 13 $441,000; FY 14 $441,000; FY 15 $441,000; FY 16 

$441,000

Abstract: This project provides a comprehensive continuum of state-of-the-art rehabilitation care for 

persons with traumatic brain injury (TBI) and conducts TBI research, including clinical trials and the 

analysis of standardized data. In this project, the NNJTBIS conducts a site-specific, double-blinded, 

randomized controlled trial of a cognitive rehabilitation intervention for processing speed deficits utilizing a proven methodology shown to be effective through multiple studies in the aging population. The 

project also includes a collaborative modular project to be determined. Finally, the NNJTBIS contributes 

new data to the National TBI Model Systems Database, and coordinates with the NIDRR-funded Model 

Systems Knowledge Translation Center to provide scientific results and information for dissemination to 

clinical and consumer audiences. 
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Traumatic Brain Injury Model Systems 

New York 

New York Traumatic Brain Injury Model System (NY-TBI-MS) 

Mount Sinai School of Medicine 

Department of Rehabilitation Medicine

Research and Training Center 

One Gustave L. Levy Place, Box 1240 

New York, NY 10029-6574 

wayne.gordon@mssm.edu 

www.mssm.edu/tbicentral/nytbims 

Principal Investigator: Wayne A. Gordon, PhD 

Public Contact: 212/659-9372; Fax: 212/348-5901 

Project Number: H133A120084 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 12 $430,099.01; FY 13 $430,099.01; FY 14 $430,099.01; FY 15 $430,099.01; 

FY 16 $430,099

Abstract: The objectives of this project focus on improving the quality of life of persons with traumatic brain injury (TBI) through state-of-the-art clinical care, innovative research, and multi-platform, 

extensive dissemination of research results and other information on TBI to consumers and professionals. This project provides a regional multidisciplinary system of care that includes a number of clinical 

programs for people with TBI in the New York City metropolitan area; contributes longitudinal data to 

the TBI National Database; conducts two local research projects to evaluate promising novel approaches 

to clinical treatment; and participates in “module” and other collaborative research. Two site-specific 

studies aim to improve quality of life for TBI survivors by developing effective treatments of post-TBI 

secondary conditions: The first study is a randomized clinical trial that evaluates the impact of light 

therapy on post-TBI fatigue. The second study examines internet-based group treatment for post-TBI 

emotional dysregulation. In addition, the TBI Model System disseminates research findings in the region 

and nationally through seminars, presentations at professional and consumer meetings, publishing in 

professional and consumer journals, and collaboration with the Model Systems Knowledge Translation 

Center. 
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Traumatic Brain Injury Model Systems 

New York 

Rusk Rehabilitation Traumatic Brain Injury Model System of Care at NYU 

New York University School of Medicine 

Rusk Institute of Rehabilitation Medicine

Ambulatory Care Center

240 East 38th Street; Floor 17 Room 17048

New York, NY 10016 

rusk.research@nyumc.org 

Principal Investigator: Tamara Bushnik, PhD; Teresa Ashman, PhD; 212/263-6547 

Public Contact: Zena Moore 212/263-8022; Fax: 212/263-2683 

Project Number: H133A120100 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 12 $427,452; FY 13 $427,253; FY 14 $427,151; FY 15 $427,171; FY 16 

$427,218

Abstract: The goals of this model system are generating new knowledge and scientific evidence to 

improve outcomes for all persons with traumatic brain injury (TBI) through the development of innovative interventions, clinical assessment and outcomes tools, and expanded service delivery options. The 

project conducts research and development activities including contribution to the TBI Model Systems 

national database, participation in collaborative modules, and two site-specific studies. The first study 

uses a two-phase approach to examine cultural disparities in rehabilitation healthcare among patients 

with TBI. The first phase is a descriptive study to collect data on culturally diverse patients with TBI 

from both Bellevue and Rusk Rehabilitation, who have been admitted into acute inpatient rehabilitation. Data collection examines the patients’ race/ethnicity, acculturation, family support, trust in health 

care providers, and health and language literacy as related to retention in healthcare after discharge from 

acute inpatient rehabilitation. The second phase of the study involves the development of the Multimedia Multicultural Educational Program for TBI (MMEPT) to provide patients with culturally-accessible 

knowledge about their TBI and the rehabilitation process to facilitate improved outcomes, particularly 

return for follow-up outpatient care. The second study assesses the responsiveness and sensitivity of the 

Traumatic Brain Injury Quality of Life Measurement System (TBI-QOL) computerized adaptive tests. 

In addition, the TBI Model System disseminates research findings in the region and nationally through 

seminars, presentations at professional and consumer meetings, publishing in professional and consumer 

journals, and collaboration with the Model Systems Knowledge Translation Center. 
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Traumatic Brain Injury Model Systems 

North Carolina 

Carolinas Traumatic Brain Injury Rehabilitation and Research System 

Carolinas HealthCare System 

Carolinas Rehabilitation 

1100 Blythe Boulevard 

Charlotte, NC 28203 

flora.hammond@carolinashealthcare.org 

www.carolinasrehabilitation.org/body.cfm?id=191 

Principal Investigator: Flora M. Hammond, MD 

Public Contact: 704/355-4330; Fax: 704/355-0709 

Project Number: H133A070042 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 07 $438,571; FY 08 $438,571; FY 09 $438,571; FY 10 $438,571; FY 11 

$438,571; FY 12 (No-cost extension through 9/30/2013)

Abstract: The Carolinas Traumatic Brain Injury Rehabilitation and Research System (CTBIRRS) is 

a comprehensive service delivery and research system serving individuals with traumatic brain injury 

(TBI). The System begins with prevention and emergency medical services and extends through intensive care, acute care, and comprehensive medical rehabilitation to long-term follow-up, community 

reintegration, and vocational rehabilitation. This Model System focuses on the challenging problem of 

post-traumatic irritability and aggression using a comprehensive, rigorous approach to generate and disseminate new knowledge on this high impact, pervasive, and under-studied problem. This approach to 

understanding irritability entails two randomized, controlled studies that build on a solid base of prior 

research by the investigators in this area: (1) a multi-center module study: “A Multi-Center, ParallelGroup, Randomized, Double-Blind, Placebo-Controlled Trial of Amantadine Hydrochloride for the 

Treatment of Chronic TBI Irritability and Aggression: A Replication Study”; and (2) a local research 

study: “Carbamazepine for the Treatment of Chronic Post-TBI Irritability and Aggression: A 42-day 

Single-Site, Forced-Titration, Parallel-Group, Randomized, Double-Blind, Placebo-Controlled Trial.” 

The research studies were developed with in-depth input from the TBI community, with a solid plan for 

continued input along the course of the project through all aspects including research implementation, 

interpretation of findings, knowledge translation, project planning, and evaluation. The evaluation plan 

is directly linked to the target impacts, and provides a list of clear criteria to facilitate project administration, judge success, ensure dissemination of findings, and provide iterative feedback. CTBIRRS utilizes 

innovative means of knowledge translation to target audiences (consumers, providers, researchers, third 

party payers, policy makers), including a consumer conference, provider skill packs and workshops, fact 

sheets, tip cards, surveys of current practices, peer-reviewed publications, scholarly presentations, and 

evidence-based reviews. 
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Traumatic Brain Injury Model Systems 

Ohio 

Ohio Regional TBI Model System 

Ohio Valley Center for Brain Injury Prevention and Rehabilitation 

Department of Physical Medicine and Rehabilitation

The Ohio State University 

1166 Dodd Rehab Hospital

480 Medical Center Drive 

Columbus, OH 43210 

monica.lichi@osumc.edu 

www.ohiovalley.org 

Principal Investigator: Jennifer Bogner, PhD; John D. Corrigan, PhD; 614/293-3830 

Public Contact: Monica Lichi 614/293-3802; Fax: 614/293-8886 

Project Number: H133A070029 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 07 $434,393; FY 08 $457,354; FY 09 $434,353; FY 10 $434,381; FY 11 

$434,376; FY 12 (No-cost extension through 09/30/2013)

Abstract: Building on previous research, this project investigates the relationship between decisionmaking (e.g. delay discounting) and outcomes of supported employment in persons with traumatic brain 

injury (TBI) receiving substance abuse treatment. In a second, collaborative research module, the Model 

System extends preliminary studies completed at Ohio State University using geographic identifiers 

to compile data about the social and economic characteristics of a person’s neighborhood and examine their contribution to outcomes from TBI. This module contributes to an evaluation of the utility of 

adding a geographic identifier, based on a person’s residence at follow-up, to the TBI Model Systems 

National Dataset providing future Model Systems researchers with an ever-growing array of information 

about the environment and linking it to Model Systems data about an individual’s outcome. This model 

system develops the “SynapShots” educational website reaching a national audience of consumers via 

a cooperative agreement with the Brain Injury Association of America. Additionally, this model system 

collaborates with Model Systems Knowledge Translation Center to conduct a systematic review of the 

literature on screening and brief interventions for injury populations in order to address the applicability 

to persons with moderate and severe TBI. 
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Traumatic Brain Injury Model Systems 

Ohio 

Ohio Regional Traumatic Brain Injury Model System 

Ohio Valley Center for Brain Injury Prevention and Rehabilitation 

Department of Physical Medicine and Rehabilitation

The Ohio State University 

1166 Dodd Rehab Hospital

480 Medical Center Drive 

Columbus, OH 43210 

monica.lichi@osumc.edu 

www.ohiovalley.org 

Principal Investigator: Jennifer Bogner, PhD; John D. Corrigan, PhD; 614/293-3830 

Public Contact: Monica Lichi 614/293-3802; Fax: 614/293-8886 

Project Number: H133A120086 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Offi cer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 12 $447,500; FY 13 $447,500; FY 14 $447,500; FY 15 $447,500; FY 16 

$447,500

Abstract: This project provides comprehensive, multidisciplinary services for individuals with traumatic brain injury (TBI), and conducts site-specifi c research examining chronic health conditions related

to TBI designed to contribute new protocols for a “disease management” approach. The fi rst site-specifi c 

study is a randomized controlled trial that builds on previous studies to determine how Screening and

Brief Intervention (SBI) techniques for alcohol misuse can be adapted for persons with moderate and

severe TBI. SBI protocols are elaborated by (1) enhancing positive expectations for health and wellness

benefi ts that accrue from reduced alcohol consumption, (2) including “booster sessions” as has been

incorporated into SBI protocols used in Emergency Departments, and (3) providing additional accommodations for cognitive defi cits. The second study combines data from two studies, thus allowing examination of the contribution of premorbid and co-occurring conditions to later decline up to fi ve years

following a moderate or severe TBI. Data from almost 350 participants enrolled in both the TBI Model

Systems National Dataset and the TBI Practice Based Evidence Study are combined to allow in-depth,

medical information on co-morbid conditions to be examined for their effect on mortality and morbidity

over the fi ve years following injury. In addition, the TBI Model System disseminates research fi ndings

in the region and nationally through seminars, presentations at professional and consumer meetings,

publishing in professional and consumer journals, and collaboration with the Model Systems Knowledge
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Traumatic Brain Injury Model Systems 

Pennsylvania 

The Moss Traumatic Brain Injury Model System 

Albert Einstein Healthcare Network 

Moss Rehabilitation Research Institute 

60 East Township Line Road 

Elkins Park, PA 19027 

thart@einstein.edu 

www.einstein.edu/facilities/mossrehab/index.html 

Principal Investigator: Tessa Hart, PhD 

Public Contact: 215/663-6153; Fax: 215/663-6113 

Project Number: H133A070040 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 07 $434,399; FY 08 $434,399; FY 09 $434,399; FY 10 $434,399; FY 11 

$434,399; FY 12 (No-cost extension through 9/30/2013)

Abstract: The Moss Traumatic Brain Injury Model System (TBIMS) includes two site-specific research 

projects embedded within a state-of-the-art traumatic brain injury (TBI) treatment and clinical research 

facility. Project 1 is a placebo-controlled pilot study of the effects of dextroamphetamine (DEX) on attention, engagement in therapy, cognitive and motor speed, and other outcomes in subacute TBI. This 

project also examines the possibility that DEX accelerates the pace of functional recovery in the subacute phase. Project 2 is a cross-national collaboration with a specialty TBI service in a Copenhagen 

hospital, which has many similarities to the Moss TBIMS in terms of patient mix, treatment philosophy, 

and cultural milieu. The Copenhagen facility provides significantly longer and, in some respects, more 

intensive inpatient care and rehabilitation compared to Moss (and other US rehabilitation facilities), 

even for patients with comparable injury severity. This affords a natural experiment in which persons 

with TBI treated at the two facilities are compared on a range of 6- and 12-month outcomes, including 

functional status, emotional well-being and quality of life, and caregiver burden. The Moss TBIMS also 

collaborates in multi-center longitudinal database research and collaborative module projects. In addition, extensive knowledge translation projects provide evidence-based skills and knowledge enhancement for clinicians specializing in TBI care and for consumers via collaboration with the Brain Injury 

Association of Pennsylvania. 
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Traumatic Brain Injury Model Systems 

Pennsylvania 

The Moss Traumatic Brain Injury Model System 

Albert Einstein Healthcare Network 

Moss Rehabilitation Research Institute 

60 East Township Line Road 

Elkins Park, PA 19027 

thart@einstein.edu 

www.einstein.edu/facilities/mossrehab/index.html 

Principal Investigator: Tessa Hart, PhD 

Public Contact: 215/663-6153; Fax: 215/663-6113 

Project Number: H133A120037 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 12 $447,500; FY 13 $447,500; FY 14 $447,500; FY 15 $447,500; FY 16 

$447,500

Abstract: This project utilizes a network of local and regional, national, and international collaborations 

to provide a full continuum of high-quality treatment spanning emergency and acute trauma/ neurosurgical care through community re-entry with which to achieve multiple goals in clinical care, research, and 

dissemination. The project includes two site-specific research projects, both designed to generate new 

knowledge that leads to improved practices to meet the needs of people with TBI. Project 1 is a randomized controlled trial examining the effects of a novel, theoretically motivated treatment to promote emotional health via increased levels of rewarding activity for persons with post-acute TBI. The treatment 

combines principles of Behavioral Activation with intervention methods derived from action phase theories of behavior change, and uses SMS (text) messaging to support increased activity in values-driven 

goal areas. Project 2 develops and performs initial validation studies on an observational pain scale, with 

the potential to extend effective pain management to the at-risk population of patients with TBI who 

cannot self-report pain due to impairments in consciousness or communication. Moss TBIMS includes 

strong components for dissemination and knowledge translation targeted to people with TBI and their 

families, clinical staff across the continuum of care, and other professional and lay audiences. 
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Traumatic Brain Injury Model Systems 

Texas 

North Texas Traumatic Brain Injury Model System 

Baylor Research Institute 

8080 North Central Expressway, Suite 500 

Dallas, TX 75206 

Shahid.Shafi@baylorhealth.edu 

Principal Investigator: Shahid Shafi, MD 

Public Contact: 214/265-2607; Fax: 214/265-3640 

Project Number: H133A120098 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 12 $447,500; FY 13 $447,500; FY 14 $447,500; FY 15 $447,500; FY 16 

$447,500

Abstract: The purpose of this project is to improve the outcomes of TBI patients in the North Texas 

region and beyond by providing multidisciplinary state-of-the-art care to meet the needs of TBI patients 

and families. Project activities include contributing longitudinal data to the TBI Model Systems national 

database, both new enrollment and follow-up, two site-specific projects, and participation in collaborative research modules. The two site-specific studies are: Project 1: To study the comparative effectiveness of variations in clinical practices and patient outcomes across TBIMS rehabilitation centers and the 

development of evidence-based practice guidelines for TBI rehabilitation, and Project 2: To identify TBI 

patients that may benefit from early methylphenidate therapy utilizing Single Photon Emission Computed Tomography (SPECT) imaging of dopamine transporter. In addition, the TBI Model System disseminates research findings in the region and nationally through seminars, presentations at professional and 

consumer meetings, publishing in professional and consumer journals, and collaboration with the Model 

Systems Knowledge Translation Center. 
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Traumatic Brain Injury Model Systems 

Texas 

The Texas Traumatic Brain Injury Model System of TIRR 

The Institute for Rehabilitation and Research (TIRR) 

1333 Moursund Avenue 

Houston, TX 77030 

mark.sherer@memorialhermann.org 

www.memorialhermann.org/locations/tirr/forhealthprofessionals/content.aspx?id=1162 

Principal Investigator: Mark Sherer, PhD 

Public Contact: 713/799-7007

Project Number: H133A070043 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 07 $430,350; FY 08 $430,350; FY 09 $430,350; FY 10 $430,350; FY 11 

$430,350; FY 12 (No-cost extension through 9/30/2013)

Abstract: The Texas TBI Model System of TIRR conducts a program of research, dissemination activities, and clinical care designed to address social relationships and to improve outcomes for persons with 

traumatic brain injury (TBI). Research activities include: (1) contributions to the TBI Model Systems 

National Database; (2) a collaborative, multi-center, research module project on sexuality after TBI; and 

(3) a local project on social communication difficulties after TBI. A collaborative project on sexuality 

determines the frequency, type, and severity of changes in sexual functioning after TBI. As part of this 

project, researchers conduct the first randomized, clinical trial of an intervention to increase satisfaction 

with sexual functioning and comfort level in discussing sexual issues for persons with TBI and their 

partners. A local project on social communication conducts a randomized clinical trial of an intervention to improve social communication skills and social integration for persons with TBI, with the largest 

sample size of any similar study and one of only two randomized controlled trials conducted in this area 

for over 20 years. 
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Traumatic Brain Injury Model Systems 

Texas 

Texas TBI Model System of TIRR 

The Institute for Rehabilitation and Research (TIRR) 

1333 Moursund Avenue 

Houston, TX 77030 

mark.sherer@memorialhermann.org 

www.memorialhermann.org/locations/tirr/forhealthprofessionals/content.aspx?id=1162 

Principal Investigator: Mark Sherer, PhD 

Public Contact: 713/799-7007

Project Number: H133A120020 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 12 $447,500; FY 13 $447,500; FY 14 $447,500; FY 15 $447,500; FY 16 

$447,500

Abstract: This project conducts a program of research, dissemination activities, and clinical care designed to decrease emotional distress and to improve participation outcomes for persons with traumatic 

brain injury (TBI). Research activities include: (1) contributions to the TBI Model Systems (TBIMS) 

National Database, (2) participation in collaborative, module projects, and (3) a local project that is a 

randomized controlled trial of Acceptance and Commitment Therapy (ACT) as compared to a devised 

standard of care intervention to decrease emotional distress and improve participation for persons with 

TBI. This initial trial will lead to larger multicenter comparative effectiveness trials using this intervention. In addition, the TBI Model System disseminates research findings in the region and nationally 

through seminars, presentations at professional and consumer meetings, publishing in professional and 

consumer journals, and collaboration with the Model Systems Knowledge Translation Center. 
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Traumatic Brain Injury Model Systems 

Virginia 

Virginia Commonwealth Traumatic Brain Injury Model System 

Virginia Commonwealth University 

Department of Physical Medicine and Rehabilitation 

Box 980542 

Richmond, VA 23298-0452 

jhmarwit@vcu.edu 

www.tbi.pmr.vcu.edu 

Principal Investigator: Jeffrey S. Kreutzer, PhD 804/828-9055 

Public Contact: Jennifer Marwitz 804/828-3704; Fax: 804/828-2378 

Project Number: H133A120031 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 12 $436,200; FY 13 $436,200; FY 14 $436,200; FY 15 $436,200; FY 16 

$436,200

Abstract: This project utilizes rigorous scientific methods to examine the benefits of two interventions. 

Projects focus on survivors and couples. One study examines a structured, curriculum-based approach to 

improve survivors’ resilience and adjustment. The second study examines the benefits of an intervention 

for couples. Although many professionals agree that strengthening caregivers can enhance rehabilitation 

outcomes, there is little research regarding the benefits of interventions designed specifically to address 

the needs of couples after injury. In addition to the site-specific trials, the project collects data for the 

National Database and participates in a collaborative module project. The TBI Model System disseminates research findings in the region and nationally through seminars, presentations at professional and 

consumer meetings, publishing in professional and consumer journals, and collaboration with the Model 

Systems Knowledge Translation Center. 
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Traumatic Brain Injury Model Systems 

Washington 

University of Washington Traumatic Brain Injury Model System 

University of Washington 

Department of Rehabilitation Medicine 

Box 356490, BB-953 Health Sciences 

Seattle, WA 98195-6490 

krbell@uw.edu 

depts.washington.edu/rehab/tbi 

Principal Investigator: Kathleen R. Bell, MD 

Public Contact: 206/685-0935; Fax: 206/685-3244 

Project Number: H133A070032 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 07 $430,349; FY 08 $430,348; FY 09 $430,346; FY 10 $430,347; FY 11 

$430,350; FY 12 (No-cost extension through 03/31/2013)

Abstract: University of Washington’s Traumatic Brain Injury Model System (UWTBIMS) provides a 

comprehensive, integrated continuum of medical, surgical, and rehabilitation services to persons with 

acute and chronic traumatic brain injury (TBI). This project conducts two site-specific projects. The 

first is a randomized controlled intervention study evaluating the effect of a structured, telephone-based 

mentoring program for caregivers focusing on self-management skills. This study builds upon previous 

experiences with telephone counseling for both people with traumatic brain injury and multiple sclerosis. This research is particularly important because caregivers are so crucial to the successful rehabilitation and community re-integration of persons with TBI and the literature on successful interventions 

for this population is so sparse. The use of a telephone-based program allows researchers to reach those 

(especially in rural regions) who lack ready access to knowledgeable advice, behavior change support, and specialty care sufficient to maintain the health of their significant other and themselves. The 

second project utilizes a large and rich database to predict a number of important long-term outcomes. 

The modular project studies the natural history of headache under conditions of usual care during the 

first year after TBI. This project characterizes the course and nature of headache, a common but poorly 

studied consequence of TBI. It examines the impact of headache on outcome and its potential modifiers, 

describes patient treatment preferences, and lays the foundation for a multi-site clinical trial. 
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Traumatic Brain Injury Model Systems 

Washington 

University of Washington Traumatic Brain Injury Model System (UWTBIMS) 

University of Washington 

Department of Rehabilitation Medicine 

Box 356490, BB-953 Health Sciences 

Seattle, WA 98195-6490 

krbell@uw.edu 

depts.washington.edu/rehab/tbi 

Principal Investigator: Kathleen R. Bell, MD 

Public Contact: 206/685-0935; Fax: 206/685-3244 

Project Number: H133A120028 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 12 $441,000; FY 13 $441,000; FY 14 $441,000; FY 15 $441,000; FY 16 

$441,000

Abstract: University of Washington’s Traumatic Brain Injury Model System (UWTBIMS) provides a 

comprehensive, integrated continuum of medical, surgical, and rehabilitation services to persons with 

acute and chronic traumatic brain injury (TBI). Project activities include a site-specific project on posttraumatic headache (PTH), a collaborative research project with other model centers, coordination with 

the Knowledge Translation Center, and continued contribution to the TBI model systems national database. The site-specific project is a Phase II trial of sumatriptan, an FDA-approved treatment for migraine, to treat moderate to severe headache after TBI.
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Field Initiated Projects (FIPs) 

Alabama 

Cognitive Behavioral Therapy (CBT) for Caregivers of Operation Iraqi Freedom/Operation 

Enduring Freedom (OIF/OEF) Service Members with Traumatic Brain Injury (TBI) 

University of Alabama at Birmingham 

Department of Ophthalmology 

1720 University Boulevard

Callahan Hospital, Suite 609

Birmingham, AL 35294 

dreer@uab.edu 

Principal Investigator: Laura E. Dreer, PhD 

Public Contact: 205/325-8681; Fax: 205/325-8692 

Project Number: H133G120237 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 12 $200,000; FY 13 $200,000; FY 14 $200,000

Abstract: This project evaluates the impact of Problem-Solving Training (PST), a telehealth-based, cognitive behavioral therapy intervention for adult, non-paid military family caregivers of Operation Iraqi 

Freedom and Operation Enduring Freedom (OIF/OEF) service members with combat-related traumatic 

brain injury (TBI). A randomized clinical trial tests the following objectives: (1) To test the efficacy of 

an innovative, telephone-based, PST intervention for adult, non-paid military family caregivers of OIF/

OEF service members with combat-related TBI on improving caregiver quality of life outcomes. (2) To 

test the indirect impact of a telephone-based, PST intervention for military caregivers on quality of life 

outcomes of OIF/OEF service members with combat-related TBI. Primary and secondary outcomes are 

assessed at baseline prior to intervention implantation and at three and seven-month follow-up.
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Field Initiated Projects (FIPs) 

Alabama 

Falls-Based Training to Improve Balance and Mobility Post-Stroke 

University of Alabama at Birmingham 

Department of Physical Therapy 

1720 2nd Avenue South; SHPB 384

Birmingham, AL 35294-1212 

dbrownpt@uab.edu 

Principal Investigator: David A. Brown, PhD 

Public Contact: 205/975-2788; Fax: 205/975-7787 

Project Number: H133G120297 

Start Date: October 01, 2012 

Length: 12 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 12 $197,493

Abstract: This project utilizes falls-based training to compare balance and mobility outcomes against 

a standardized program of body-weight support treadmill training within a single-blinded, randomized 

controlled trial design in a cohort of 40 individuals with chronic (longer than six months) post-stroke 

hemiplegia. Overground walking training is shown to be an effective intervention for improving muscle 

coordination and functional locomotor outcomes in persons with chronic post-stroke hemiplegia. However, the physical challenges to balance during overground walking training are limited by safety concerns; consumers may not experience difficult tasks that might result in loss of balance. Using a new 

robotic device called the KineAssist, participants practice a repertoire of six challenging tasks that represent environmental hazards while the KineAssist provides safety and a graded challenge. As participants 

practice these tasks, and gain competency in withstanding mobility situations that require a high level 

of neuromuscular control, they make important and substantial gains in mobility function. The primary 

balance outcome measure includes changes to the Berg Balance Score, and primary walking outcomes 

of a gait speed over a 10 meter distance and distance on the 6-minute walk test. Secondary measures 

include the scores on the Activities-Specific Balance Confidence Scale and changes in quality of life as 

measured by the SF-36 and Stroke Impact Scale. 
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Field Initiated Projects (FIPs) 

California 

NEW DOOR: Nutrition, Exercise, Weight Management & Disability Obesity Options and 

Resources 

World Institute on Disability 

3075 Adeline Street 

Berkeley, CA 94703-2545 

marsax@wid.org 

www.wid.org 

Principal Investigator: Marsha Saxton, PhD 

Public Contact: 510/225-6349; Fax: 510/763-4109 

Project Number: H133G120093 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 12 $199,999; FY 13 $199,999; FY 14 $199,999

Abstract: This project develops and implements NEW DOOR, a multifaceted wellness program designed to reduce obesity and encourage healthy living for people with disabilities. NEW DOOR emphasizes workable changes toward healthy nutritional choices based on federal nutrition guidelines, and 

empowering fun, inclusive physical activity, via fitness classes, team sports, biking, boating, dancing, 

etc. Participants engage with and help educate their own health providers to monitor health indicators 

such as blood pressure, heart rate, and secondary conditions. The model is disseminated through a comprehensive, accessible, bilingual website offering resources for peer-led education and training about 

inclusive fitness and obesity interventions. The model utilizes social media, online videos, and personal 

fitness success stories. Outputs include the NEW DOOR Disability Cook Book, with disability friendly, 

healthy recipes, and simple, accessible meal preparation tips, to be distributed to national organizations. 
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Field Initiated Projects (FIPs) 

Colorado 

Developing a Relevant Instrument to Assess Caregiver Distress and Benefit in Spinal Cord Injury 

Craig Hospital 

3425 South Clarkson Street 

Englewood, CO 80113-2899 

susie@craighospital.org 

Principal Investigator: Susan Charlifue, PhD 

Public Contact: 303/789-8306; Fax: 303/789-8441 

Project Number: H133G090013 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 09 $199,999; FY 10 $199,999; FY 11 $199,999; FY 12 (No-cost extension 

through 9/30/2013)

Abstract: This project employs a combined qualitative and quantitative methodology to develop a 

relevant instrument to assess caregiver distress and benefit in spinal cord injury (SCI). The project uses 

a focus group methodology to identify areas of concern for family members providing assistance to a 

loved one with SCI. Detailed qualitative analysis of the focus group transcripts is used to identify themes 

and concepts that may be operationalized into questions for a new instrument to assess caregiver distress 

and benefit in SCI. The instrument is pilot tested with 250 family SCI caregivers. Items for a final instrument are selected following factor analysis and Rasch analysis. The lived experience of SCI caregiving, 

as expressed by the caregivers themselves, helps identify what factors are associated with positive or 

negative experiences for SCI family caregivers. From this rich contextual information, a new measure to 

assess distress and benefit in SCI caregiving is developed. Led by Craig Hospital in Englewood, Colorado, the project is a collaborative research effort with three other prominent SCI rehabilitation facilities: 

University of Alabama at Birmingham; Santa Clara Valley Medical Center in San Jose, California; and 

the Kessler Medical Rehabilitation Research and Education Center/Kessler Foundation in West Orange, 

New Jersey. 
NIDRR Program Directory FY 2012 - Health and Function

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Field Initiated Projects (FIPs) 

Florida 

Sleep-Disordered Breathing in Persons with Chronic Tetraplegia: Characterization and 

Intervention 

University of Miami 

Miller School of Medicine 

1095 Northwest 14th (R48) 

Miami, FL 33136 

Principal Investigator: Mark S. Nash, PhD 

Public Contact: 305/243-3628; Fax: 305/243-3215 

Project Number: H133G100217 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 10 $199,711; FY 11 $199,611; FY 12 $197,934

Abstract: This project investigates the prevalence and treatment of sleep-disordered breathing (SDB) 

in adults with spinal cord injury (SCI) resulting in tetraplegia. SDB is characterized by sleep fragmentation with cyclical oxygen desaturation and daytime sleepiness. Consequences of SDB include decline in 

physical performance and mental alertness, impaired memory and intellectual processing, mood disturbances characterized by anxiety and depression, decreased health-related quality of life (HRQoL), and 

increased risk for vehicular or occupational injury. Despite considerable advancements in understanding 

and treating SDB, including favored use of positive airway pressure (PAP), an evidence base sufficient 

to warrant routine evaluation and treatment of SDB is lacking for those with SCI. This project conducts 

a hypothesis-driven study with three specific goals: (1) describing the clinically-relevant determinants 

of sleep quality in persons with chronic tetraplegia, (2) assessing clinical features and co-morbid risks 

associated with SDB in persons with tetraplegia, and (3) determining if interventions using PAP reduces 

health risks and improves HRQoL in persons with tetraplegia having extant SDB. Researchers use a 

regression model to test whether SDB is associated with daytime sleepiness, anthropometrics (weight, 

height, neck circumference, and body/abdominal fat), age, and supine forced vital capacity. Researchers 

also test if periodic limb movement is a cause for poor sleep quality, and whether individuals with moderate to severe SDB have greater cardiometabolic (CM) risks (insulin resistance, vascular inflammation, 

and endothelial dysfunction) than cohorts having mild to absent SBD. In a third study, 25 persons with 

established moderate to severe SDB undergo a titration procedure to establish airway pressures required 

for PAP therapy, use PAP nightly for three months, and undergo retesting for CM risks and HRQoL to 

test improvements after PAP treatment. This research enhances the understanding of prevalence, causes, 

co-morbidities, predictors, and treatments for SDB, and better distinguishes the association of SDB on 

disease-accelerating risks and QoL. Project outcomes are utilized in producing an evidence base for 

customary evaluation and treatment that fosters changes in medical practice patterns, while bringing attention to both stakeholders with SCI and their health providers of both apparent and obscure hazards of 

SDB. 
NIDRR Program Directory FY 2012 - Health and Function

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Field Initiated Projects (FIPs) 

Illinois 

Noninvasive Examination of ALS Using Surface EMG 

Rehabilitation Institute of Chicago (RIC) 

Sensory Motor Performance Program (SMPP) 

345 East Superior Street, Room 1406 

Chicago, IL 60611-2654 

p-zhou@northwestern.edu 

www.smpp.northwestern.edu 

Principal Investigator: Ping Zhou, PhD 

Public Contact: 312/238-1365; Fax: 312/238-2208 

Project Number: H133G090093 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 09 $188,537; FY 10 $199,858; FY 11 $199,059; FY 12 (No-cost extension 

through 01/31/2013)

Abstract: This project develops a robust technique for noninvasive motor unit discrimination using the 

surface electromyogram (EMG), and then, to utilize the technique to supplement, and potentially replace 

in certain cases, the routine needle EMG examination of amyotrophic lateral sclerosis (ALS). There are 

two study goals: (1) develop and test noninvasive surface EMG unitary decomposition methods; this 

includes quality controls by validating and refining the developed methods using both computational 

and experimental approaches; and (2) perform a surface EMG examination of the pathological changes 

in ALS patients, mainly at the motor unit level, using these newly developed noninvasive methods. 

The strategies utilized in this project lie in both surface EMG recording and signal processing methods. 

Development is based on two-dimensional, high density electrode arrays for surface EMG recording, 

which represent the most recent advance in surface EMG electrode design. Taking advantage of the 

spatial information and multi-channel recording of the electrode arrays, the project uses the most appropriate EMG signal processing methods to extract single motor unit activities from the surface EMG. 

These methods include linear and nonlinear spatial filtering, two-dimensional motor unit action potential 

template matching, pattern recognition, and state-of-the-art blind source separation techniques. This in 

turn includes laboratory-based studies and repeated testing in ALS clinics. While the directly targeted 

population is patients with ALS, these research activities may potentially benefit individuals with other 

neuromuscular diseases who may need EMG examination. 
NIDRR Program Directory FY 2012 - Health and Function

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Field Initiated Projects (FIPs) 

Kansas 

Weight Loss by Individuals with Physical Disabilities 

University of Kansas 

Life Span Institute 

10212 South North Lake Avenue 

Olathe, KS 66061 

msaundrs@ku.edu 

Principal Investigator: Amanda Reichard, PhD; Muriel D. Saunders, PhD

Public Contact: 785/864-1618; Fax: 785/864-5323 

Project Number: H133G090230 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: Margaret Campbell, PhD 

NIDRR Funding: FY 09 $199,801; FY 10 $199,992; FY 11 $199,674; FY 12 (No-cost extension 

through 09/30/13)

Abstract: This project conducts a randomized trial to evaluate weight loss and weight maintenance using both sides of the energy balance equation (i.e., energy intake and energy expenditure) in overweight 

and obese individuals with physical disabilities who have impaired mobility. Researchers compare participants who use the modified Stop Light Diet (SLDm) with participants who follow the National Heart, 

Lung, and Blood Institute (i.e., standard nutrition and intake recommendations or usual care [UC]). 

Following a 6-month period of reduced energy intake (weight loss), both groups are placed on a diet 

with sufficient energy to maintain weight (i.e., weight maintenance) for an additional 12 months. Both 

groups are encouraged to participate in a physical activity program appropriate for their physical abilities throughout the 18 months. Program intervention and participant acceptance are evaluated through 

extensive process analysis of quantitative and qualitative data. The project also tracks and analyzes the 

health care utilization patterns and secondary health outcomes of participants in both the SLDm and UC 

diets using secondary data analysis of Kansas Medicaid claims data. 
NIDRR Program Directory FY 2012 - Health and Function

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Field Initiated Projects (FIPs) 

Kentucky 

Combining Brain Stimulation and Peripheral Nerve Stimulation to Improve Upper Extremity 

Function After Severe Stroke 

University of Kentucky Research Foundation 

UK Physical Medicine & Rehabilitation 

Kentucky Clinic, Wing C, Room C280 

Lexington, KY 40536-0284 

lumy.sawaki@uky.edu 

www.mc.uky.edu/pmr/Research/sscrr/current_research.asp 

Principal Investigator: Lumy Sawaki, PhD 

Public Contact: 859/323-6226; Fax: 859/257-9372 

Project Number: H133G120086 

Start Date: October 01, 2012 

Length: 24 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 12 $199,994; FY 13 $1 (Funds for FY 2013 were funded using FY 2012 program 

money)

Abstract: This project measures neuroplastic change and motor recovery from severe post-stroke 

hemiparesis in response to a novel combination of brain stimulation techniques and intensive upper 

extremity motor training. Transcranial direct current stimulation (tDCS) and peripheral nerve stimulation 

(PNS) are noninvasive brain stimulation techniques. Each technique can modulate neuroplasticity and 

enhance the outcomes of motor training in subjects with stroke. The study investigates the neuroplastic 

and motor functional effects of combined tDCS/PNS preceding intensive upper extremity motor training 

for subjects with severe post-stroke hemiparesis. Subjects in this study undergo one of four stimulation 

conditions: (1) combined active tDCS with active PNS (“Active+Active”), (2) combined active tDCS 

with sham PNS (“Active+Sham”), (3) combined sham tDCS with active PNS (“Sham+Active”), or (4) 

combined sham tDCS with sham PNS (“Sham+Sham”). Each stimulation session is followed by intensive upper extremity motor training. 
NIDRR Program Directory FY 2012 - Health and Function

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Field Initiated Projects (FIPs) 

Michigan 

Auditory and Visual Working Memory in Children with Cerebral Palsy 

University of Michigan 

Department of Physical Medicine and Rehabilitation 

Burlington Office Center

325 East Eisenhower Parkway, Suite 300 

Ann Arbor, MI 48108 

jaqk@umich.edu 

Principal Investigator: Jacqueline Kaufman, PhD 

Public Contact: 734/936-7052; Fax: 734/936-7048 

Project Number: H133G110015 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 11 $199,396; FY 12 $199,911; FY 13 $199,971

Abstract: The purpose of this study is to examine auditory and visual-spatial working memory (WM) 

using accessible test strategies in children diagnosed with cerebral palsy (CP). The objective of the 

study is to develop a more universally accessible measure of WM and to improve understanding of WM 

profiles in children diagnosed with CP. Participants are presented with visual-spatial and auditory stimulus streams, with parametric manipulations of memory load and delay. This study characterizes WM 

for higher functioning children with CP and produces feasibility data regarding task accessibility for 

children with the most significant disabilities. This study has three specific aims: (1) to develop an accessible measure of auditory and visual-spatial WM that is comparable to traditional WM measures, (2) to 

examine visual-spatial and auditory WM accuracy in children diagnosed with CP (who are verbal communicators) compared to their typically developing peers, and (3) to examine interactions of load and 

delay in association with accuracy. 
NIDRR Program Directory FY 2012 - Health and Function

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Field Initiated Projects (FIPs) 

New Jersey 

Developing Executive Functioning through Cognitive Remediation for College Students with 

Psychiatric Disabilities 

University of Medicine and Dentistry of New Jersey 

Department of Psychiatric Rehabilitation and Counseling Services 

1776 Raritan Road, Room 313 

Scotch Plains, NJ 07076 

mullenmi@umdnj.edu 

Principal Investigator: Michelle Mullen-Gonzalez 

Public Contact: 908/889-2513; Fax: 908/889-2701 

Project Number: H133G110239 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 11 $200,000; FY 12 $199,999; FY 13 $199,670

Abstract: This project evaluates an innovative intervention specified for college students with psychiatric disabilities. Students with psychiatric disabilities require tailored, education-specific interventions 

to maintain matriculation in postsecondary settings. While specialized services have been developed to 

help these students manage their psychiatric conditions, it has become obvious that there is a set of common skills that are missing yet critical in these same students. These skills may well represent an important layer of the “invisible disability” that goes unnoticed and could contribute to poor academic performance, high attrition rates, and poor vocational trajectory. To develop the competencies often associated 

with academic success, this study utilizes strategy coaching, the compensatory method of cognitive 

remediation. This project modifies Twamley’s Cognitive Training manual for college students in order 

to develop Focused Academic Skill Training (FAST). The goal of this study is to test whether individuals receiving FAST experience improved academic success such as better grades and greater number of 

courses completed than those receiving campus services alone at one-year follow-up. 
NIDRR Program Directory FY 2012 - Health and Function

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Field Initiated Projects (FIPs) 

New Jersey 

Improving New Learning and Memory in TBI: Applying fMRI to Measure 

Kessler Foundation 

Kessler Foundation Research Center 

300 Executive Drive, Suite 10 

West Orange, NJ 07052 

nchiaravalloti@kesslerfoundation.org 

www.kesslerfoundation.org 

Principal Investigator: Nancy D. Chiaravalloti, PhD 

Public Contact: 973/530-3640; Fax: 973/736-7886 

Project Number: H133G090078 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 09 $198,744; FY 10 $198,737; FY 11 $193,549; FY 12 (No-cost extension 

through 09/30/2013)

Abstract: Impairments in new learning and memory are among the most common deficits in persons 

with traumatic brain injury (TBI). This project examines the impact of a targeted behavioral intervention 

on functional cerebral activity using functional magnetic resonance imaging (fMRI). Research determines if improvement in learning and memory is associated with particular patterns of functional, cerebral activity on fMRI. Participants receive pre- and post-treatment fMRI evaluations, which are correlated with behavioral performance assessed concurrently. Additionally, participants complete a six-month 

post-treatment fMRI to examine the maintenance of treatment effects over time, as well as the impact of 

“booster sessions” to facilitate the maintenance of treatment effects from a neuro-functional perspective.
NIDRR Program Directory FY 2012 - Health and Function

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Field Initiated Projects (FIPs) 

New York 

Effects of Resistive Respiratory Muscle Training on Respiratory Function, Functional 

Performance, Fatigue, and Quality of Life in Individuals with Multiple Sclerosis 

State University of New York (SUNY) at Buffalo 

Department of Rehabilitation Science 

515 Kimball Tower 

Buffalo, NY 14214 

nfisher@buffalo.edu 

Principal Investigator: Nadine M. Fisher, EdD 

Public Contact: 716/829-6724; Fax: 716/829-3217 

Project Number: H133G120081 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 12 $596,998; FY 13 $1 (Funds for FY 2013 were funded using FY 2012 program 

money); FY 14 $1 (Funds for FY 2014 were funded using FY 2012 program money)

Abstract: This study examines whether improving respiratory muscle strength and endurance also 

improves overall exercise capacity and, in turn, functional performance. The most common symptom 

of multiple sclerosis (MS) is fatigue that interferes with an individual’s function. Fatigue also affects 

respiratory muscles, which leads to stealing of blood from other working muscles, causing their fatigue 

as well. Thus, respiratory muscle weakness contributes to exercise intolerance. It has been shown that 

exercise can reduce fatigue in individuals with MS. The goals of this research study are: (1) to determine 

the effects of a six-week resistive respiratory muscle training (RRMT) program of the inspiratory and 

expiratory muscles on respiratory muscle strength and endurance, exercise capacity, pulmonary function, 

functional performance, perceived fatigue, and quality of life; and (2) to assess the effects of a once-aweek RRMT maintenance program on maintaining these variables over a six-month period for individuals with mild to moderate MS. 
NIDRR Program Directory FY 2012 - Health and Function

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Field Initiated Projects (FIPs) 

Oregon 

Promoting Adoption and Implementation of the Healing Pathways Program to Reduce Depressive 

Symptoms in Women with Physical Disabilities 

Oregon Health and Science University 

School of Nursing 

3455 SW US Veterans Road, SN-637 

Portland, OR 97239-2941 

phillide@ohsu.edu 

Principal Investigator: Dena Hassouneh, PhD 

Public Contact: 503/494-2714; Fax: 503/494-3878 

Project Number: H133G110083 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 11 $199,900; FY 12 $199,900; FY 13 $199,900

Abstract: The overall aim of this project is to develop products that promote the sustainable adoption 

and implementation of the Healing Pathways (HP) program into disability communities, increasing options for efficacious mental health treatment for women with physical disability (WPD) outside of the 

traditional mental health system, promoting consumer control, and increasing quality of life for members 

of this population. The HP program is a strengths-based, peer-implemented cognitive behavioral group 

therapy program for WPD experiencing depression. This project includes an Agency Tool-Kit to guide 

consumer-run agencies in making information decisions about HP program adoption and implementation, and an HP Peer Facilitator Certification and Training program to ensure that when the HP program 

is adopted, it is implemented with safety and fidelity.
NIDRR Program Directory FY 2012 - Health and Function

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Field Initiated Projects (FIPs) 

South Carolina 

Ambulation and Secondary Complications: Participants with Chronic Spinal Cord Injury. 

Medical University of South Carolina 

College of Health Professions

Department of Health Sciences and Research

77 President Street, Suite C101

MSC 700

Charleston, SC 29425 

swayngim@musc.edu 

www.longevityafterinjury.com 

Principal Investigator: James S. Krause, PhD; Sandra Brotherton, PhD; David Morrisette, PhD; 

843/792-1337 

Public Contact: Karla Swayngim Reed 843/792-7051; Fax: 843/792-5649 

Project Number: H133G090059 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 09 $199,986; FY 10 $199,978; FY 11 $199,973; FY 12 (No-cost extension 

through 09/30/2013)

Abstract: A wave of recent research has identified short-term benefits of gait training for people with 

spinal cord injury (SCI); yet, other research suggests there may be unforeseen long-term adverse consequences of ambulation. Analysis of existing data shows that pain interference and depressive symptoms 

were substantially higher among ambulatory participants who were dependent on others for assistance, 

even when compared with wheelchair users. This project builds upon this preliminary research by testing a comprehensive mediational model of the relationships of three classes of ambulation parameters 

(reliance on assistive devices and orthoses, reliance on people, and functionality) with two sets of secondary conditions (pain and fatigue). Structural equation modeling is used to test the mediational model 

that three ambulation parameters are associated with risk of two chronic secondary conditions, which 

are in turn associated with variations in participation, depressive symptoms, and quality of life. By 

virtue of identifying the ambulation parameters that are associated with secondary conditions and when 

ambulation is counterproductive after SCI, this study guides rehabilitation professionals and consumers 

in choosing the most appropriate mobility option (wheelchair or ambulation) that minimizes secondary 

conditions, promotes community participation, and enhances quality of life. 
NIDRR Program Directory FY 2012 - Health and Function

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Field Initiated Projects (FIPs) 

South Carolina 

Participation, Subjective Well Being, Health, and Spinal Cord Injury:A 40-Year Longitudinal 

Study 

Medical University of South Carolina 

College of Health Professions

Department of Health Sciences and Research 

77 President Street, Suite C101

MSC 700

Charleston, SC 29425 

swayngim@musc.edu 

www.longevityafterinjury.com 

Principal Investigator: James S. Krause, PhD; Lee L. Saunders, PhD; 843/792-1337 

Public Contact: Karla Swayngim Reed 843/792-7051; Fax: 843/792-5649 

Project Number: H133G110157 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 11 $199,998; FY 12 $200,000; FY 13 $200,000

Abstract: This project builds upon a 40-year ongoing longitudinal study of spinal cord injury (SCI) to 

help us better understand the natural course of aging and to lay the foundation for intervention strategies to improve outcomes. This study was initiated in 1973 using a revolving-panel longitudinal design 

with routine follow-ups every five years, and the intermittent addition of new participant samples to 

counter attrition (this is the eighth stage of data collection). Study enhancements include identification 

of age-related changes, factors predicting change, and the role of resiliency in buffering individuals 

from age-related declines. The project identifies the natural course of changes in employment, participation, health, life satisfaction, and self-reported problems using an expanded version of the Life Situation 

Questionnaire (developed in 1973). Several additional key constructs are addressed. Specific measures 

have been added related to aging, with more detail and diversity than those that are included in more basic large-scale data sets. The data are analyzed using sequential designs that combine cross-sectional and 

longitudinal elements. Researchers also identify factors related to unfavorable changes in outcomes over 

time by contrasting participants whose outcomes are stable with those whose outcomes have declined; 

and policy recommendations at the individual (recommended practices), rehabilitative (programmatic 

needs), and legislative federal level (allocation of funds in areas that will promote better outcomes). 
NIDRR Program Directory FY 2012 - Health and Function

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Field Initiated Projects (FIPs) 

Washington 

Telephone and In-Person Cognitive Behavioral Therapy for Depression After Traumatic Brain 

Injury 

University of Washington 

Department of Psychiatry and Behavioral Sciences 

1959 NE Pacific Street

Box 356560 

Seattle, WA 98195 

fann@u.washington.edu 

Principal Investigator: Jesse R. Fann, MD 

Public Contact: 206/685-4280; Fax: 206/221-5414 

Project Number: H133G070016 

Start Date: October 01, 2007 

Length: 36 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 07 $199,873; FY 08 $199,981; FY 09 $199,915; FY 10 (No-cost extension 

through 9/30/2011); FY 11 (No-cost extension through 9/30/2012); FY 12 (No-cost extension through 

9/30/2013)

Abstract: This project continues previous efforts to establish evidence-based treatments for major depressive disorder (MDD) in people with traumatic brain injury (TBI). MDD is the most common psychiatric disorder among TBI survivors and has widespread negative effects on health and functional outcomes in people with TBI. This three-armed randomized controlled trial compares in-person cognitive 

behavioral therapy for depression that is adapted for people with TBI (CBT-TBI), and telephone-based 

CBT-TBI to a usual depression care condition (UC). Previous research found that people with TBI and 

depression are highly interested in using psychotherapy to treat depression. Although psychotherapy is 

widely used in the treatment of general psychological aspects of TBI, solid evidence for the efficacy of 

psychotherapy for MDD in this population is absent. While CBT is the most evidence-based psychotherapy available for MDD, thus far there is only expert opinion to guide how CBT should be adapted for 

people with TBI (i.e., to accommodate patients with neurocognitive and neurobehavioral impairments). 

Therefore, this study adapts CBT specifically for people with TBI in a three-arm trial and measures the 

feasibility, acceptability, and potential effectiveness of this adapted intervention in both telephone-administered and in-person formats, compared with UC. The long-term goal of this research is to develop 

a feasible and effective manualized psychotherapy intervention to treat major depressive disorder in 

persons with TBI that is applicable across a wide array of settings. 
NIDRR Program Directory FY 2012 - Health and Function

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Field Initiated Projects (FIPs) 

Washington 

Natural History of Headache Following Mild Traumatic Brain Injury 

University of Washington 

Department of Rehabilitation Medicine 

1959 NE Pacific Street, Box 356490 

Seattle, WA 98195-6490 

tbi.washington.edu 

Principal Investigator: Kathleen R. Bell, MD; Suriyya Dikman, PhD; Jeanne M. Hoffman, PhD 

Public Contact: Jeanne M. Hoffman, PhD 206/221-6511; Fax: 206/685-3244 

Project Number: H133G090022 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 09 $199,923; FY 10 $199,324; FY 11 $199,682; FY 12 (No-cost extension 

through 09/30/2013)

Abstract: This project evaluates headache in those with mild traumatic brain injury (TBI) with the ultimate goal of developing a clinical trial to treat post-traumatic headache (PTH). Headache is a common 

diagnosis after TBI with an estimate of 30 to 90 percent of those with TBI developing migrainous or 

other type of headache, compared to the general population with 4 percent prevalence. Based on available literature and clinical observations, individuals with mild TBI are thought to suffer from headaches 

more frequently compared to those with more severe injuries. This study leverages existing resources 

by building upon a study being currently conducted through the TBI Model System at the University 

of Washington examining the natural history of headache in moderate to severe TBI and addresses the 

problem of headaches in the full spectrum of TBI severity. This project uses similar assessment tools 

as in the ongoing TBI Model System’s study to describe the characteristics of PTH using standardized 

headache measures and classifications. Additionally, it identifies predictors of headache and compares 

acute and chronic headache, as well as examines the impact of headache on return to work and other outcomes. Assessments occur at injury, and 3, 6, and 12 months after injury. This study, in conjunction with 

the current TBIMS study, provides a comprehensive description and natural history of PTH available at 

present. 
NIDRR Program Directory FY 2012 - Health and Function

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Field Initiated Projects (FIPs) 

Washington 

Amitriptyline to Prevent Headache after Traumatic Brain Injury 

University of Washington 

Department of Rehabilitation Medicine 

1959 NE Pacific Street

Box 356490

Seattle, WA 98195-6490 

krbell@uw.edu 

Principal Investigator: Kathleen R. Bell, MD 

Public Contact: 206/685-0935

Project Number: H133G120055 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 12 $199,213; FY 13 $198,418; FY 14 $199,826

Abstract: This project conducts a two-arm, open-label pilot study to determine if early treatment with 

amitriptyline will decrease the frequency and severity of headaches after mild traumatic brain injury 

(TBI). Specific Aim 1 is to conduct a two-arm open-label study to examine the effect of preventive 

treatment with amitriptyline on the frequency and severity of headache after mild TBI. Specific Aim 2 

is to collect data needed for design of a Phase III study, including an estimate of effect size, headache 

variability, and desirable drug treatment start date. Specific Aim 3 is to examine the feasibility of using 

headache diaries with individuals with mild TBI. Specific Aim 4 is to establish the safety and tolerability 

of amitriptyline for the prevention of headache after mild TBI. Headache is one of the most common 

persisting pain complaints after mild TBI. Preventive treatment of headache after TBI may not only 

reduce chronicity but also improve general health and quality of life for those with TBI. 
Technology for Access and Function

With NIDRR’s research priorities, technology spans the goals of sustaining health and 

function, employment, and participation and community living reflecting the critical 

contributions of technology to successful outcomes for persons with disabilities in all 

these areas. At the individual level, the primary focus is on assistive technology devices 

that enhance the physical, sensory, and cognitive abilities of people with disabilities 

and assist them in participating and functioning more independently in the home, at 

work, in recreational settings, and at cultural and community events. At the systems 

level, the emphasis is on applying technology research and development in ways that 

enhance community integration, independence, productivity, competitiveness, and equal 

opportunity by mitigating or eliminating barriers found in large social systems such as 

public transportation, telecommunications, IT, and the built environment.

Contents

Rehabilitation Engineering Research Centers (RERCs) .......................................................................3

Disability and Rehabilitation Research Projects .................................................................................21

Field Initiated Projects (FIPs) .............................................................................................................22

Small Business Innovation Research (SBIR), Phase I ........................................................................56

Small Business Innovation Research (SBIR), Phase II ......................................................................69

NIDRR Program Directory FY 2012 - Technology for Access and Function

3-3

Rehabilitation Engineering Research Centers (RERCs) 

Alabama 

Interactive Exercise Technologies and Exercise Physiology for People with Disabilities 

The University of Alabama at Birmingham 

School of Health Professions, SHPB 331 

1720 2nd Avenue South 

Birmingham, AL 35294-3361 

jrimmer@uab.edu

www.rectech.org

Principal Investigator: James H. Rimmer, PhD 

Public Contact: 205/975-9010; Fax: 205/975-7787 

Project Number: H133E120005 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Margaret Campbell, PhD 

NIDRR Funding: FY 12 $950,000; FY 13 $950,000; FY 14 $950,000; FY 15 $950,000; FY 16 

$950,000

Abstract: This Center conducts an advanced engineering research and development program using new 

and emerging technologies to address the high rates of physical inactivity in youths and adults with disabilities. The Center includes a coordinated set of research, development, capacity building, and knowledge translation/dissemination projects focused on promoting healthier, more active lifestyles for people 

with disabilities. The key target areas for the research and development projects are improving access 

to recreation and exercise venues and equipment, increasing opportunities for people with disabilities to 

participate in beneficial exercise, using technology to support greater adherence to regular exercise, and 

promoting regular exercise and active lifestyles for people with disabilities as a way to improve health 

and function. The research agenda includes projects aimed at (1) determining a valid methodology for 

using commercially available activity monitors to estimate energy expenditure (i.e., daily physical activity) in manual wheelchair users; (2) the use of off-the-shelf e-health technology for promoting safe and 

effective dose-response tele-exercise training in the home for adults with mobility disability; and (3) 

evaluation of a highly scalable information communication technology platform that promotes community-based physical activity for youths with disabilities. Development projects include (1) adaptation 

of sensors and game controllers to allow youths with disabilities to participate in currently inaccessible 

active video games; (2) high definition video-based virtual exercise environments integrated into an Advanced Virtual Exercise Environment Device for promoting socially engaging physical activity in people 

with disabilities; and (3) development of universal design standards for accessible fitness equipment 

and fitness facilities. Capacity building efforts include a rehabilitation engineering mentorship program, 

student design coursework in exercise/recreation technology, and infusion of rehabilitation engineering 

and disability into the graduate curriculum. Knowledge transfer projects include a state-of-the-science 

conference in exercise/recreation technology, a RecTech wiki, and a series of webinars and online newsletters promoting new knowledge in exercise science, engineering, and recreation. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-4

Rehabilitation Engineering Research Centers (RERCs) 

California 

Rehabilitation Engineering Research Center: Develop and Evaluate Technology for Low Vision, 

Blindness, and Multi-Sensory Loss 

The Smith-Kettlewell Eye Research Institute 

2318 Fillmore Street 

San Francisco, CA 94115 

rerc@ski.org 

www.ski.org/Rehab 

Principal Investigator: John A. Brabyn, PhD 415/345-2110 

Public Contact: Deborah Gilden, PhD 415/345-2000; Fax: 415/345-8455 

Project Number: H133E110004 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 11 $949,490; FY 12 $949,149; FY 13 $949,892; FY 14 $949,332; FY 15 

$949,198

Abstract: This project conducts a comprehensive research and development program in the areas of 

blindness, low vision, and sensory loss, focusing on assessment, access to technology, and education in 

science, technology, engineering, and math (STEM). Within these three main areas, the project identifies 

and addresses outstanding problems faced by the different age and population groups including infants 

and young children, school and working age individuals, elders, returning veterans, and persons with 

combined visual and hearing impairments. Assessment projects include utilizing visual evoked potential 

technology to investigate how to best predict likely future visual ability for reading, assessing the factors 

leading to reading deficits in elders and veterans, determining optimal eye movement strategies for persons with blind spots in their central visual fields, and guidelines for evaluation of visual function afforded by visual prostheses. The CamIO system addresses access to graphics, appliances, and devices with 

visual displays and controls, using computer vision to capture finger motions relative to device controls, 

read display contents, and provide auditory feedback for real-time interaction. Expanding the existing 

computer-vision-based sign finding and sign reading research to solve practical user-oriented problems 

such as camera aiming and user information overload address access to signage. The project also develops a next-generation, reduced-cost variant of the Remotely Accessible Infrared Signage technology, 

and pursues development of special hearing aids designed to enhance wayfinding cues for people with 

combined visual and hearing impairments. Finally, the project partners with a major science curriculum 

developer to apply these and other technology to adapt widely used mainstream science curricula for 

universal access to support STEM education for students with visual impairments. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-5

Rehabilitation Engineering Research Centers (RERCs) 

Colorado 

Rehabilitation Engineering Research Center for Cognitive Rehabilitation 

University of Colorado 

Health Sciences Center 

601 East 18th Avenue, Suite 130 

Denver, CO 80203 

cathy.bodine@ucdenver.edu 

www.rerc-act.org 

Principal Investigator: Cathy Bodine, PhD 

Public Contact: 303/315-1281; Fax: 303/837-1208 

Project Number: H133E090003 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: Margaret Campbell, PhD 

NIDRR Funding: FY 09 $949,999; FY 10 $949,995; FY 11 $949,999; FY 12 $949,999; FY 13 

$949,999

Abstract: This project focuses on the research and development of cognitive technologies for individuals with cognitive disabilities across the life span. Cognitive technologies increase the quality of life of 

consumers, their families, and caregivers; expand inclusion in all aspects of life and work; and increase 

independence. Focusing on three main areas, this project addresses: (1) development of a product usability testing facility focusing on rigorous industry-standard product testing protocols for cognitive assistive technology; (2) development of a core software/sensor platform to support mobile animated agents 

used for multiple applications; and (3) development of standards—currently a critical missing link for 

cognitive technology information technology access and technologies. Project activities focus on the 

challenges of people with cognitive disabilities in obtaining and maintaining employment, and succeeding in the workplace. Moreover, this project addresses a number of specific challenges such as effective 

non-linear job coaching, coaching for jobs and tasks involving multiple workplace locations, returning 

to a task after the many types of interruptions presented in the modern technological workplace, and 

learning vocabulary for the workplace. Long-term project outcomes include increasing employment, job 

longevity, and job satisfaction for people with cognitive disabilities. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-6

Rehabilitation Engineering Research Centers (RERCs) 

District of Columbia 

Rehabilitation Engineering Research Center on Hearing Enhancement 

Gallaudet University 

Department of Hearing, Speech, and Language Sciences 

800 Florida Avenue, NE, MTB 116 

Washington, DC 20002 

rerc.he@gmail.com 

www.hearingresearch.org 

Principal Investigator: Matthew H. Bakke, PhD 

Public Contact: 202/651-5335; Fax: 202/651-5324 

Project Number: H133E080006 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 08 $949,935; FY 09 $949,997; FY 10 $949,953; FY 11 $949,946; FY 12 

$949,921

Abstract: This project builds and tests components of an innovative model of aural rehabilitation (AR) 

tools, services, and training in order to assure a better match between hearing technologies and individuals in their natural environments. Project goals include: (1) improving assessment, fitting, availability, 

and use of hearing technologies; (2) increasing the quality, availability, and knowledge of AR services; 

(3) training of consumers, service providers, and future researchers, developers, and practitioners; and 

(4) transferring technology and knowledge to agencies, standards bodies, consumers, and the professions 

who influence the communicative effectiveness of those who are deaf or hard-of-hearing. Additional 

component projects are designed to fall into four areas: (1) AR projects improve the assessment and 

treatment of individuals in need of AR; (2) hearing technology addresses the technological challenges of 

real-life use of assistive technologies, hearing aids, and cochlear implants; (3) training programs provide 

training to individuals who will become the rehabilitation innovators of the future; and (4) dissemination 

and advocacy programs transfer technology and knowledge to agencies, standards bodies, consumers, 

and hearing professionals. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-7

Rehabilitation Engineering Research Centers (RERCs) 

Georgia 

Rehabilitation Engineering Research Center on Workplace Accommodations 

Georgia Institute of Technology 

Center for Assistive Technology and Environmental Access (CATEA) 

490 Tenth Street, NW 

Atlanta, GA 30318 

workrerc@coa.gatech.edu 

www.workrerc.gatech.edu 

Principal Investigator: Karen Milchus; Jon Sanford; 404/894-0393 

Public Contact: 404/894-1414; 800/726-9119; Fax: 404/894-9320 

Project Number: H133E070026 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: Shelley Reeves 

NIDRR Funding: FY 07 $949,999; FY 08 $949,999; FY 09 $950,000; FY 10 $950,000; FY 11 

$949,999; FY 12 (No-cost extension through 9/30/2013)

Abstract: The Rehabilitation Engineering Research Center on Workplace Accommodations (Work 

RERC) identifies, develops, and promotes new assistive and universally designed technologies that 

maximize independence and participation of people with disabilities in the workplace. It focuses on the 

application of universal design concepts to improve the utility of workplace tools and devices for all 

workers through research, development, training, and dissemination. Research activities investigate five 

topics identified by current RERC research: user needs, longitudinal cost/benefits of accommodations, 

strategies used by aging workers, the impact of policy on access to and utilization of accommodations, 

and the effect of accommodations on employee participation in the workplace. Several development 

activities create and validate new workplace assessment tools for use by practitioners and employees. 

Other development activities design, prototype, and evaluate new workplace accommodations. Universally designed workstations and human-computer interfaces are being developed. In addition, this 

project develops technology for workers with identified and unmet accommodation needs, including 

prompting aids for employees with developmental disabilities and accommodations for employees with 

communication disabilities. Finally, Work RERC training activities include both instruction and evaluation of training outcomes and target vocational rehabilitation professionals, workers with disabilities, 

and students interested in design and engineering. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-8

Rehabilitation Engineering Research Centers (RERCs) 

Georgia 

Rehabilitation Engineering Research Center for Wheeled Mobility in Everyday Life 

Georgia Institute of Technology 

Center for Assistive Technology and Environmental Access (CATEA) 

490 Tenth Street, NW 

Atlanta, GA 30318 

mobilityrerc@coa.gatech.edu 

www.mobilityrerc.gatech.edu 

Principal Investigator: Stephen Sprigle, PhD 404/385-4302 

Public Contact: 404/894-4960 (V/TTY); Fax: 404/385-9320 

Project Number: H133E080003 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 08 $949,998; FY 09 $949,995; FY 10 $949,994; FY 11 $949,998; FY 12 

$949,995

Abstract: This project promotes new ways of conceptualizing and understanding wheeled mobility 

while focusing on devices and interventions that impact device use and activity performance. This approach enables as many individuals as possible to actively participate in everyday life. Project goals 

include four integrated program areas in research, development, training, and dissemination that utilize 

a variety of methodologies and scientific approaches taking research out of the laboratory and putting it into real-world, everyday environments. Project research centers on four activities: R1. Pressure 

Ulcer Prevention: Susceptibility and Pressure Relief Effectiveness; R2. Effects of Mobility Device and 

Environmental Facilitators on Activity and Participation; R3. Improved Training to Improve Function 

which studies the effect of immediate video feedback on acquisition of advanced wheelchair skills, and 

the impact of an innovative wheelchair Tai Chi program on health, activity, and participation; and R4. 

Improved Wheelchair Prescription which examines effects of wheelchair type on performance of elders 

in public spaces and investigate how well clinicians predict the wheelchair use of their clients. Development projects address standards and test methods and commercial projects and include: D1. Development of Standards and Test Methods which develops three wheelchair cushion standards and a wheelchair test method to accurately measure the mechanical effort required to propel manual wheelchairs; 

D2. Inventor-Driven Product Development that assists in developing products that have been conceived 

by small companies and inventors; and D3. Development of Orphan Technologies, developing devices 

that have small markets but serve useful needs. Four training projects focus on a variety of audiences 

including: T1. Evidence-Based Online Wheelchair Seating and Positioning Course; T2. Advanced Rehabilitation Research Training; T3. Creating Rehabilitation Engineering and Assistive Technology Experiences; and T4. State of the Science Conference. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-9

Rehabilitation Engineering Research Centers (RERCs) 

Georgia 

Rehabilitation Engineering Research Center for Wireless Technologies 

Georgia Institute of Technology 

Virginia C. Crawford Research Institute; Shepherd Center 

2020 Peachtree Road, NW 

Atlanta, GA 30309 

john_morris@shepherd.org 

www.wirelessrerc.org 

Principal Investigator: Helena Mitchell, PhD 

Public Contact: John Morris, PhD; Program Manager and Research Scientist; 404/367-1348; Fax: 

404/350-7596 

Project Number: H133E110002 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 11 $950,000; FY 12 $950,000; FY 13 $950,000; FY 14 $950,000; FY 15 

$950,000

Abstract: The mission of the Rehabilitation Engineering Research Center (RERC) for Wireless Technologies is to: (1) promote access and use of wireless technologies by people with disabilities, and (2) 

encourage adoption of universal design approaches in future generations of wireless technologies. The 

Research Section includes two projects focused on user-center approaches to research, development, and 

evaluation of wireless technologies and policy initiatives to remove barriers to and promote use of wireless innovations by people with disabilities. User-Centered Research: Consumer Advisory Network (R1) 

is designed to provide the wireless industry and government regulators with reliable, actionable, and 

independent data on the needs and wants of consumers with disabilities. Policy Approaches to Accelerate Access to Advanced Wireless Technologies (R2) conducts policy research and analysis as it relates 

to the needs of people with disabilities, accessibility, and migratory shifts in wireless technologies. The 

Development Section includes two projects aimed at responding to ongoing trends in handheld technology, wireless networks, and federal policy. The App Factory (D1) is an “open (to any app developer) 

shop” to promote development of a variety of software applications that address needs, support independence, and improve quality of life and community participation of people with disabilities, including 

those with cognitive, physical, sensory, or communication disabilities. Emergency Lifelines on Wireless 

Platforms (D2) identifies, develops, and tests solutions for ensuring that next-generation emergency 

communication systems (e.g., NG 9-1-1 and mobile broadband alerting) afford full access to people with 

disabilities, particularly as emergency alerts move from conventional broadcast media (radio and TV) 

to wireless networks and devices. The Training and Dissemination Section includes three projects that 

promote the adoption of new knowledge into practice. The State of the Technology conference focuses 

on strategies for engaging consumers in rehabilitation research and engineering, impact of public policy 

on equitable access and migration from legacy, analog technologies to next-generation, digital technologies. The RERC’s two other training projects undertake initiatives designed to educate consumers, service providers, manufacturers, and other professionals. Efforts include consumer workshops, university 

courses, an annual student design competition, and conference tutorials; all geared toward access and 

usability of mobile wireless technologies. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Rehabilitation Engineering Research Centers (RERCs) 

Illinois 

Rehabilitation Robotics and Telemanipulation Machines Assisting Recovery from Stroke 

Rehabilitation Engineering Research Center (MARS-RERC) 

Rehabilitation Institute of Chicago (RIC) 

Sensory Motor Performance Program (SMPP)

Department of Physical Medicine and Rehabilitation at Northwestern University 

345 East Superior Street, ONT-936

Attn: MARS-RERC Research Administration Chicago

Chicago, IL 60611-2654 

j-patton@northwestern.edu 

www.mars-rerc.org 

Principal Investigator: Jim Patton, PhD; W. Zev Rymer, MD, PhD; 205/975-9010 

Public Contact: Jim Patton, PhD 312/238-1277; Fax: 312/238-7605 

Project Number: H133E070013 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 07 $949,775; FY 08 $949,779; FY 09 $949,751; FY 10 $949,816; FY 11 

$949,754; FY 12 (No-cost extension through 9/30/2013)

Abstract: Machines Assisting Recovery from Stroke Rehabilitation (MARS-RERC) is a multi-institutional center designed to evaluate the utility of simple robotic devices for providing rehabilitation therapy after hemispheric stroke. The broad objective is to develop devices that assist the therapist in stroke 

treatments that are rationally based, intensive, and long in duration. Such devices also monitor progress, 

and help to improve the functional performance of stroke survivors, to increase the likelihood of their return to community and to work. The Center designs and implements a program of research and development, investigating the use of robot devices and related engineering technologies for better restoration of 

function in stroke survivors. The focus is largely on stroke because this is the most common neurological disorder requiring intensive and prolonged rehabilitation. Research activities center on the application of new approaches that improve recovery outcomes of the entire body during either upper extremity 

reach-and-grasp activities or lower body locomotion activities. MARS-RERC includes six programs of 

study: (1) development of new capabilities of the Lokomat® walking robot, (2) development of hand 

technology involving reaching, (3) development of telerehabilitation using an arm gravity-assistance device, (4) research benefits of error augmentation in relearning after stroke, (5) research benefits of overground walking the KineAssist® robot, and (6) training initiative on rehabilitation-oriented engineering 

design. Research training is a critical component that includes medical students, physician residents in 

physical medicine, graduate students in engineering and neuroscience, and allied health clinicians including physical and occupational therapists. There is a separate advanced education and training project 

dedicated to the design of robotic devices (Project 6 above) for rehabilitation as part of Northwestern 

University’s highly successful initiative in engineering design education. MARS-RERC is hosted at the 

Rehabilitation Institute of Chicago in conjunction with multi-national partners at Northwestern University; University of Illinois at Chicago; University of California at Irvine; ETH in Zurich; and National 

Institute of Astrophysics, Optics, and Electronics in Puebla, Mexico. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Rehabilitation Engineering Research Centers (RERCs) 

Illinois 

Rehabilitation Engineering Research Center for Prosthetics and Orthotics 

Northwestern University 

Feinberg School of Medicine

Department of Physical Medicine and Rehabilitation 

680 North Lake Shore Drive, Suite 1100 

Chicago, IL 60611 

reiu@northwestern.edu 

www.nupoc.northwestern.edu 

Principal Investigator: Stefania Fatone, PhD; Steven Gard, PhD

Public Contact: 312/503-5700; Fax: 312/503-5760 

Project Number: H133E080009 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 08 $949,999; FY 09 $949,999; FY 10 $949,999; FY 11 $949,999; FY 12 

$949,999

Abstract: This project improves the quality of life for persons who use prostheses and orthoses through 

creative applications of science and engineering to prosthetics and orthotics (P&O) through seven 

research projects and five development projects. These projects enhance the ability of prosthesis and 

orthosis users to perform activities of daily living and negotiate their daily environment safely and effectively, engage in their chosen employment/vocation, and improve their health through the safe and 

effective use of P&O devices. Increasing understanding about the fundamental biomechanics of standing, walking, reaching, grasping, and the corresponding utilization of P&O devices for these activities 

enables better evaluation and improvement upon current P&O technologies. Research is broad in scope 

involving lower-limb prosthetics, lower-limb orthotics, upper-limb prosthetics, analysis of spinal motion 

during gait in users of prostheses, and utilization of process and outcome information to improve P&O 

care delivery. Additional focus is given to the needs of farmers and ranchers with amputations. Development projects focus on human locomotion, reaching, grasping, and manipulation; and providing efficient 

and cost-effective production of prosthetic components with the goal to assist P&O clinicians in their 

daily practices by providing them with new mechanisms, evaluation and designs tools, and information 

about prosthetic/orthotic usage. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-12

Rehabilitation Engineering Research Centers (RERCs) 

Illinois 

Machines Assisting Recovery from Stroke and Spinal Cord Injury for Reintegration into Society 

(MARS3) 

Rehabilitation Institute of Chicago (RIC) 

Sensory Motor Performance Program (SMPP)

Department of Physical Medicine and Rehabilitation at Northwestern University 

345 East Superior Street, ONT-936

Attn: MARS-RERC Research Administration Chicago

Chicago, IL 60611-2654 

j-patton@northwestern.edu 

www.mars-rerc.org 

Principal Investigator: Jim Patton, PhD; David J. Reinkensmeyer, PhD; 312/238-1277 (Patton); 

949/824-5218 (Reinkensmeyer)

Public Contact: Jim Patton, PhD 312/238-1277; Fax: 312/238-7605 

Project Number: H133E120010 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 12 $949,613; FY 13 $949,754; FY 14 $949,782; FY 15 $949,717; FY 16 

$949,800

Abstract: Machines Assisting Recovery from Stroke Rehabilitation (MARS3) is a multi-institutional 

center designed to evaluate the utility of robotic devices for providing rehabilitation therapy after neural 

injury. Research activities focus substantially on recovery from stroke because individuals with stroke 

are by far the largest user group requiring intensive rehabilitation and assistance. However, this center 

also pilots new applications in spinal cord injury, cerebral palsy, traumatic brain injury, and aging. Seven 

research and development projects center on the use of robots for restoration of function and return to 

society: D1: Development of expertise in lower-extremity exoskeleton use; D2: A body-machine interface for promoting motor recovery while controlling assistive devices; D3: Wheelchair-based robotic upper extremity exercise and power-assisted propulsion; D4: Wearable aid for fall prevention; R1: Robotic 

mobility activity center in a fitness facility for people with disabilities; R2: Virtual environment for hand 

home therapy following stroke; and R3: Community-ready upper extremity interactive rehabilitation. 

Additionally, three crosscutting core facilities will assist all projects: (1) avatar communications with users; (2) statistical design; and (3) technology transfer. This Center is an international collaboration with 

the Rehabilitation Institute of Chicago, University of Illinois at Chicago, the University of California at 

Irvine, Northwestern University, The Illinois Institute of Technology, and Delft University of Technology in the Netherlands. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Rehabilitation Engineering Research Centers (RERCs) 

New York 

RERC on Universal Design in the Built Environment 

University at Buffalo

The State University of New York

School of Architecture and Planning 

114 Diefendorf Hall

3435 Main Street

Buffalo, NY 14214 

ap-idea@buffalo.edu 

www.ap.buffalo.edu/idea 

Principal Investigator: James Lenker, PhD; Edward Steinfeld, ArchD; 716/829-5899 

Public Contact: Jordana Maisel 716/829-5902; Fax: 716/829-3861 

Project Number: H133E100002 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 10 $950,000; FY 11 $950,000; FY 12 $950,000; FY 13 $950,000; FY 14 

$950,000

Abstract: This project advances knowledge translation for universal design using a Knowledge-ToAction Model. It generates strategically important research, development, training, and dissemination 

deliverables that integrate universal design principles with the generally accepted models, methods, 

and metrics in the building and product manufacturing industries. Research and dissemination activities 

address three broad domains of the built environment: (1) housing, (2) public buildings, and (3) community infrastructure. Research projects produce new knowledge about needs and priorities in universal 

design and critical human factors data essential to resolving design and engineering problems in each of 

the three domains. One research project establishes a knowledge base for home modification service delivery and standards; another studies the effectiveness of current universal design standards and conducts 

targeted human performance studies to improve the evidence base for public building design. A third 

project evaluates, organizes, and improves knowledge to support and improve current policy initiatives 

and standards related to universal design of public rights-of-way. One set of development initiatives 

improves and creates consensus standards and evidence-based guidelines to implement universal design 

concepts through a certification and accreditation process. Another applies best practices in new product 

development to produce exemplar products and environments with industry partners. Training activities increase understanding and build capacity for a wide range of stakeholders through online education 

for professionals, research and development experiences for advanced graduate students, and outreach 

and assistance to design schools. Dissemination outputs include traditional refereed and trade publications, an extensive website with downloadable information products, and outreach activities related to 

newly emerging federal policy. The State of the Science Conference involves stakeholders in identifying 

knowledge gaps in practice. Collectively, these projects generate strategically important deliverables that 

address high priority needs that increase the adoption of universal design within the built environment. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Rehabilitation Engineering Research Centers (RERCs) 

North Carolina 

Rehabilitation Engineering Research Center for Communication Enhancement (AAC-RERC) 

Duke University 

Department of Surgery

Division of Speech Pathology and Audiology 

220 West Main Street 

Durham, NC 27705 

aac-rerc@mc.duke.edu 

www.aac-rerc.com 

Principal Investigator: David Beukelman, PhD; Frank DeRuyter, PhD; 919/684-6271 

Public Contact: Jessica House 919/681-9983; Fax: 919/681-9984 

Project Number: H133E080011 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 08 $949,965; FY 09 $949,991; FY 10 $949,901; FY 11 $949,987; FY 12 

$949,993

Abstract: The mission of the Rehabilitation Engineering Research Center for Communication Enhancement (AAC-RERC) is to assist people who use augmentative and alternative communication (AAC) 

technologies in achieving their goals across environments. The goals and objectives of the AAC-RERC 

are to advance and promote AAC technologies through the outputs and outcomes of its research and 

development activities; and to support individuals who use, manufacture, and recommend these technologies in ways they value. The project builds on collaborative relationships with researchers and developers both in and outside of the field of AAC and assistive technology, including DynaVox Technologies, the Federal Laboratory Consortium, Department of Navy, and Research In Motion among others. 

Research projects include: (1) AAC technologies to reduce cognitive/linguistic load; (2) new interface 

strategies for AAC technologies; and (3) AAC technologies to increase usability, acceptance, and learnability. Development activities include: (1) Connecting to the World - AAC access to mainstream technologies; (2) new interface strategies for AAC technologies; and (3) usability, acceptance, and learnability of AAC technologies. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-15

Rehabilitation Engineering Research Centers (RERCs) 

Pennsylvania 

Rehabilitation Engineering Research Center on Spinal Cord Injury 

University of Pittsburgh 

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology 

6425 Penn Avenue, Suite 401 

Pittsburgh, PA 15206 

dkeelan@pitt.edu 

Principal Investigator: David M. Brienza, PhD 412/624-6383 

Public Contact: Debby Keelan 412/624-6214; Fax: 412/624-6501 

Project Number: H133E070024 

Start Date: October 01, 2007 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 07 $949,999; FY 08 $950,000; FY 09 $950,000; FY 10 $949,999; FY 11 

$950,000; FY 12 (No-cost extension through 9/30/2013)

Abstract: This center researches, develops, and evaluates innovative technologies and approaches that 

improve the treatment, rehabilitation, employment, and reintegration into society of persons with spinal cord injury (SCI). Research and development activities address tissue integrity management, upper 

extremity musculoskeletal injury prevention, and bladder function. Specific projects address: (1) the 

development of computational models of inflammation and healing for assessment of person-specific 

interventions and for general technology/intervention evaluations for pressure ulcer prevention and 

detection, (2) evaluation of the effects of support surface active cooling and low shear followed by development and evaluation of a novel seat cushion incorporating these features, (3) the development and 

evaluation of tools for manual wheelchair propulsion training, (4) the evaluation of novel manual wheelchair propulsion devices for preventing shoulder injury, (5) the evaluation of a weight shifting approach 

for preventing pressure ulcers, and (6) the development of preliminary computational models of inflammation and healing for evaluating bladder function and musculoskeletal injury status. The research team 

and collaborators include the Department of Rehabilitation Science and Technology, the Department 

of Physical Medicine and Rehabilitation, the McGowan Institute for Regenerative Medicine, the Department of Occupational Therapy at the University of Pittsburgh, Case Western Reserve University, 

Northwestern University, Baylor College of Medicine, IBM, and Immunetrics. The technology transfer 

program targets private and public sectors. The training and knowledge translation plan is equally broad 

based, targeting graduate and undergraduate students, practicing clinicians, researchers, and individuals 

with SCI and their caregivers. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-16

Rehabilitation Engineering Research Centers (RERCs) 

Pennsylvania 

Rehabilitation Engineering Research Center on Accessible Public 

Carnegie Mellon University 

Robotics Institute 

5000 Forbes Avenue 

Pittsburgh, PA 15213 

www.rercapt.org 

Principal Investigator: Aaron Steinfeld, PhD; Edward Steinfeld, ArchD

Public Contact: 412/268-6346; Fax: 412/268-6436 

Project Number: H133E080019 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 08 $948,199; FY 09 $947,430; FY 10 $947,433; FY 11 $948,113; FY 12 

$947,624

Abstract: The goal of this project is to establish an effective and sustainable process to address the high 

priority transportation needs of people with disabilities using enabling technology and universal design. 

The Rehabilitation Engineering Research Center (RERC) on Accessible Public Transportation activities 

respond to the character of public transportation and its societal context, including its significant role 

in employment and social participation. The approach focuses on transportation as a travel chain where 

problems in early links can block access to a whole system. The project mix also leverages emerging information technologies and addresses the need for consumer-driven solutions that can be rapidly 

implemented and adapted to a wide range of transportation systems. Research and development activities include: (1) evaluate accessible and affordable tools for empowering consumers and service providers to collect and utilize research data, an example of “citizen science; “ (2) provide an evidence base 

for boarding and disembarking policies, practices, and products with an in-depth examination of critical 

issues in vehicle ramp and interior design; (3) create a public website where riders can report on their 

experiences using a transportation system and software that can assist them in reaching their destination; 

and (4) produce guidelines, reference designs, and a demonstration bus with new vehicle interior concepts that are ready for commercialization. RERC activities also include active training and dissemination of evidence-based guidelines to stakeholders, publications, a conference, and capacity building for 

future research. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Rehabilitation Engineering Research Centers (RERCs) 

Pennsylvania 

Rehabilitation Engineering Research Center on Telerehabilitation 

University of Pittsburgh 

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology 

2310 Jane Street, Suite 1300 

Pittsburgh, PA 15206 

dkeelan@pitt.edu 

www.rerctr.pitt.edu 

Principal Investigator: David M. Brienza, PhD; Michael McCue, PhD; 412/624-6383 (Brienza); 

412/383-6589 (McCue) 

Public Contact: Debby Keelan 412/586-6905; Fax: 412/586-6910 

Project Number: H133E090002 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: Margaret Campbell, PhD 

NIDRR Funding: FY 09 $949,997; FY 10 $949,999; FY 11 $949,999; FY 12 $949,999; FY 13 

$949,999

Abstract: This project conducts research and develops methods, systems, and technologies to support 

consultative, preventative, diagnostic, and therapeutic interventions to improve and promote telerehabilitation (TR) for individuals who have limited access to comprehensive medical and rehabilitation 

outpatient services. This project’s research and development activities address cognitive and vocational 

rehabilitation, communication technology assessment and training, TR infrastructure, and prevention 

and management of secondary conditions. Specific project goals include: (1) developing a scalable 

informatics infrastructure, (2) developing and evaluating a neuropsychological assessment protocol, (3) 

investigating a program of applied cognitive rehabilitation, (4) investigating the use of remote job coaching, (5) developing and evaluating a TR enhanced wellness program in spina bifida, (6) investigating 

the use of TR to manage chronic edema and lymphedema in individuals with mobility disabilities, (7) 

developing and evaluating tools for augmentative and alternative communication and computer access 

service delivery, and (8) TR capacity building via selected technology implementation projects and the 

development of a uniform dataset for TR. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Rehabilitation Engineering Research Centers (RERCs) 

Wisconsin 

Rehabilitation Engineering Research Center for Universal Interface and Information Technology 

Access 

University of Wisconsin-Madison 

Trace Research and Development Center 

2107 Engineering Centers Building

1550 Engineering Drive 

Madison, WI 53706-1609 

info@trace.wisc.edu 

trace.wisc.edu/itrerc 

Principal Investigator: Gregg C. Vanderheiden, PhD 608/263-5788 

Public Contact: Kate Vanderheiden 608/265-4621 (V); Fax: 608/262-8848 

Project Number: H133E080022 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 08 $950,000; FY 09 $950,000; FY 10 $950,000; FY 11 $1,185,151; FY 12 

$950,000

Abstract: This project focuses on the accessibility of information technologies and electronic products, 

including the technologies and products encountered in education, work, travel, and in the home and 

community, both online and in life, for persons across disabilities types and socio-economic levels. This 

project’s four goals focus on the following: (1) the development of models and measures that can lead 

to better policy and more useful information for designers interested in creating products that are accessible and usable across disability; (2) creating a collaborative effort to build accessibility directly into the 

Internet and address underlying issues in the area of assistive technology; (3) advancing research on and 

the use of personal pluggable user interfaces focusing on their effectiveness in providing access to different types of mainstream technology (Project R2) and facilitating the incorporation of interface sockets 

in mainstream products (Project D2); and (4) continuing to advance commercial practice around accessibility; that is, taking concepts that have proven to be effective and making commercially available 

products which address the needs of people with disabilities. Each of these four goals seeks to foster 

change in rehabilitation or commercial practice, so that people with all levels of disability and all levels 

of socio-economic standing have effective access to both current technology and the rapidly evolving 

next-generation technologies. Finally, this project focuses on capacity building in the field through training and mentoring activities in affiliation with the Biomedical Engineering and Industrial and Systems 

Engineering departments at the University of Wisconsin-Madison in addition to other key stakeholders 

engaged in making information technology more accessible for people with disabilities. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-19

Rehabilitation Engineering Research Centers (RERCs) 

Wisconsin 

Rehabilitation Engineering Research Center on Telecommunications Access 

University of Wisconsin-Madison 

Trace Research and Development Center 

2107 Engineering Centers Building

1550 Engineering Drive 

Madison, WI 53706-1609 

outreach@trace.wise.edu 

trace.wisc.edu/telrerc 

Principal Investigator: Christian Vogler, PhD (Gallaudet University); Gregg C. Vanderheiden, PhD 

(Trace); 202/561-5257 (Gallaudet); 608/263-5788 (Trace) 

Public Contact: Kate Vanderheiden 608/265-4621 (V); Fax: 608/262-8848 

Project Number: H133E090001 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 09 $950,000; FY 10 $950,000; FY 11 $950,000; FY 12 $950,000; FY 13 

$950,000

Abstract: This project lays the foundation for access in next generation technologies and creates bridge 

technologies, allowing users to migrate to new communication technologies without losing access to 

emergency services or the ability to communicate with colleagues and family who are still on older telecommunication networks. Extending across disabilities and technology platforms, research and development activities focus on three specific issues: (1) telecommunication access in emergency situations, 

(2) interoperability and transition between current and next generation telecommunication access, and 

(3) access to telecollaboration for employment and participation. Project R1 focuses on identifying and 

quantifying the problems faced by people with hearing loss in using new Internet telecommunications 

products and networks. The project includes both a user input-gathering activity and a study to quantify 

the impact of Internet transmission on hearing loss. Projects R2 and D1 focus on telecollaboration and 

include a series of 14 sessions with consumer groups, software developers, and corporate users to identify barriers and potential strategies for increasing access to telecollaboration systems. Project D2 addresses the transition between legacy and next-generation text communication technologies. The project 

has two components: develop and prototype an affordable interim solution to reconnect deaf users of 

mobile technology who lost access to 9-1-1; and prototype a bridge technology for maintaining interoperability between old and new text communication technologies during the decade of transition to the 

next-generation (interoperable) text and total conversation (text, voice, and video) technologies. Project 

D3 provides research, prototypes, consultation, tools, and open source implementations, and other support to consumers, researchers, and industry in order to help move solutions that are already known and 

proven out of research labs and into commercial products, industry standards, professional practice, and 

the ultimately users’ hands. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-20

Rehabilitation Engineering Research Centers (RERCs) 

Wisconsin 

Rehabilitation Engineering Research Center on Technologies for Children with Orthopedic 

Disabilities 

Marquette University 

Orthopaedic and Rehabilitation Engineering Center 

735 North 17th Street

PO Box 1881 

Milwaukee, WI 53201 

depps@mcw.edu 

www.orec.org 

Principal Investigator: Gerald F. Harris, PhD 414/288-0698 

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713 

Project Number: H133E100007 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 10 $872,886; FY 11 $874,960; FY 12 $885,237; FY 13 $890,728; FY 14 

$890,264

Abstract: This project conducts research and development projects aimed at addressing the needs of 

children with orthopedic disabilities. The overall goal of the project is to transfer and commercialize 

the research to offer new tools, better technologies, and improved treatment strategies for children with 

cerebral palsy, clubfoot, spina bifida, spinal cord injury, osteogenesis imperfecta (OI), and other conditions that cause mobility and manipulation problems. The project designs and developes devices and 

improved protocols that will help alert doctors, therapists, caregivers, and family members of joint overload concerns. Those devices include the development of an elliptical machine to improve neuromuscular control and stability in children. Other development projects are a novel pediatric robotic gait trainer, 

a biplanar (3-D) fluoroscopic imaging system that allows researchers to see the internal motion of the 

bones inside the foot, and a customized orthotic (brace) based on sensor technologies to treat pediatric 

flat foot. The research projects include: gait analysis of children with OI and severe clubfoot deformity 

to determine strain on the femur and humerus in those using crutches in order to modify activities or 

design better devices to absorb forces (and thus prevent fractures) and to better direct surgeons so they 

are aware of high load areas; using MRI and fMRI imaging for children with cerebral palsy to assess if 

there are changes in brain activity as a result of surgery or robotic-assisted rehabilitation of the arms and 

legs; evaluation of home-based robot-guided therapy, combined with interactive game elements to keep 

children interested, and tele-assessment to determine effectiveness in maintaining mobility in children 

with cerebral palsy; and mobility modeling of the upper and lower extremities (arms and legs) to determine the relationship between internal joint forces, assistive devices, ankle arthroeresis (implants), and 

longer-term tissue level effects as they relate to pain and function. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-21

Disability and Rehabilitation Research Projects 

California 

Technology Access in Resource-Limited Environments 

San Francisco State University 

1600 Holloway Avenue, SCI 251 

San Francisco, CA 94132-4163 

reisinger@whirlwindatr.org 

Principal Investigator: Kim Reisinger, PhD 

Public Contact: 415/338-6277; 708/672-6097; Fax: 415/338-1290; 708/672-6097 

Project Number: H133A090020 

Start Date: October 01, 2009 

Length: 24 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 09 $950,000; FY 10 $950,000; FY 11 (No-cost extension through 3/31/2012); FY 

12 (No-cost extension through 3/31/2013)

Abstract: This project explores the factors affecting awareness of, access to, and acquisition of highquality, low-cost assistive technology (AT) in resource-limited environments (RLEs) within developing 

countries and US Tribal Lands. A systematic approach is taken to investigate the following three questions: (1) what factors influence AT provision; (2) why some models of AT provision are successful and 

under what conditions, as collectively perceived by manufacturers, distributors, service providers, and 

AT users and their families or caregivers; and (3) how stakeholders can create successful AT provision 

programs. The project uses a comprehensive review of the current methods of AT provision in literature, 

focus groups, and semi-structured interviews to develop surveys which are then administered to AT 

manufacturers/distributors, service providers, and individuals with disabilities (IWD) in five developing countries and US Tribal Lands. The survey data identify the influent factors in successful AT provision programs and effective communication methods to reach IWD in RLEs. The Assistive Technology 

Access System Development Guide, an evidence-based tool, is developed and used to improve existing 

AT provisions or provide solutions for new programs for three contextually different RLEs case studies. 

Project research provides the field of AT provision in developing countries and US Tribal Lands with the 

quantitative research and tools to steer future action; and the evaluation mechanisms to drive change on 

every level from the individual up to global policy makers. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-22

Field Initiated Projects (FIPs) 

California 

Modular Orthoses Prescription System (MOPS) 

Los Amigos Research and Education Institute 

7601 East Imperial Highway

Building 800, Room 33 

Downey, CA 90242 

prequejo@dhs.lacounty.gov 

www.larei.org 

Principal Investigator: Philip S. Requejo, PhD; Sara Mulroy, PhD

Public Contact: 562/401-7177; Fax: 562/803-5693 

Project Number: H133G100268 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 10 $199,732; FY 11 $199,658; FY 12 $199,865

Abstract: This project creates an affordable, state-of-the-art lower extremity orthotic device prescription 

system, called MOPS, that interactively guides the clinician in the decision-making process of prescribing an ankle-foot orthoses (AFO) and/or knee ankle foot orthoses (KAFOs). MOPS includes a set of 

pre-fabricated, adjustable, modular trial orthoses, and an interactive and instructional multimedia-based 

software application that guides the clinician in selecting the most appropriate AFO/KAFO design and 

settings. A decision-tree based interface assists the clinician and patient with fine-tuning adjustments to 

the orthosis settings and any necessary modifications to the shoe to optimize walking function. To determine if the modular trial orthosis mimics the performance of the orthosis prescribed to the patient, it is 

compared with the gait performance of adult participants walking with the prototype trial orthosis and 

the patient’s own final custom-molded hybrid (plastic and metal) or metal orthosis (with static or dynamic joints), as well as with no orthosis. The project evaluates the outcome of the orthotic prescription with 

MOPS through patient and clinician satisfaction surveys and a series of focus groups. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-23

Field Initiated Projects (FIPs) 

California 

Electronic Tactile Displays for Braille Text and Graphics 

Regents of the University of California 

Department of Materials Science and Engineering

University of California, Los Angeles (UCLA) 

3121-H Engineering V Building

420 Westwood Plaza 

Los Angeles, CA 90095-1595 

qpei@seas.ucla.edu 

Principal Investigator: Qibing Pei, PhD 

Public Contact: 310/825-4217; Fax: 310/206-7353 

Project Number: H133G100072 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Joseph A. DePhillips 

NIDRR Funding: FY 10 $199,999; FY 11 $199,998; FY 12 $199,998

Abstract: The project develops a low cost, lightweight, page-size refreshable tactile display panel—

Braindle, a Kindle®-like product for people with visual impairments. Braindle is equipped with WiFi 

and USB ports for Internet access, text messaging, printer connection, file loading, and storage. Project 

goals include development, device prototyping, field reliability evaluations, and the dissemination of 

technologies to the potential users with print disabilities. Major project activities include: (1) optimizating of the materials and processing of the diaphragm transducers (Braille dots) for enhanced overall 

performance, (2) developing low-cost processes for fabricating and patterning an array of diaphragm 

actuators on a multiple-layer polymer stack, (3) designing and fabricating the control circuitry, (4) collaborating with the Blind Children Center and Braille Institute of America to assess the quality of the 

prototype devices and improve the tactile comfort and device functionality for overall user satisfaction, 

and (5) assessing the business potential to determine the production cost, market size, and detailed plans 

to manufacture and distribute the Braindle devices to underserved groups. The Braindle’s multi-functionality, light weight, and low production cost allows it to reach a significant portion of the 314 million 

people worldwide who have visual disabilities, including 1.3 million blind people in the US. Braindle 

enables children to communicate instantly in the classroom with their teachers and peers through text 

messages. Braindle’s graphics capabilities allow children with blindness to tactually “read” math equations, which to date have been extremely difficult to teach. In addition, the tactile display technology can 

be adapted to provide information accessibility for people with visual disabilities at public venues. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-24

Field Initiated Projects (FIPs) 

California 

Global Access Information Navigator 

Sendero Group, LLC 

1857 Glenmark Way 

Roseville, CA 95747 

mikemay@senderogroup.com 

www.wayfinding.org 

Principal Investigator: Michael May 

Public Contact: 888/757-6810; Fax: 888/757-6807 

Project Number: H133G100135 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Joseph A. DePhillips 

NIDRR Funding: FY 10 $199,903; FY 11 $199,946; FY 12 $199,885

Abstract: This project develops a Global Access Information Navigator (GAIN) system to collect, 

enhance, and share location-based information to empower a person with a disability with the relevant 

information about their surroundings. Individuals with disabilities may use their accessible GPS device 

equipped with the developed GAIN software or the web interface to access real-time travel information such as transit stop locations, schedules, fares, and routes. Additionally, spatial layout descriptions 

including locations of audible signal lights, wheelchair ramps, accessible ticket machines, talking ATMs, 

stairs/elevators, and restrooms are included. Project activities include: (1) collecting transit data and 

evaluating existing trip planning technologies, (2) developing GAIN software, (3) developing a web 

interface, and (4) collecting user generated content via GAIN software and web interface. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-25

Field Initiated Projects (FIPs) 

District of Columbia 

An Automatic Fitting Algorithm for Cochlear Implant 

Gallaudet University 

Department of Hearing, Speech, and Language Sciences 

800 Florida Avenue, NE 

Washington, DC 20002 

matthew.bakke@gallaudet.edu 

www.hearingresearch.org 

Principal Investigator: Matthew H. Bakke, PhD 

Public Contact: 202/651-5335 (V/TTY); Fax: 202/651-5324 

Project Number: H133G060065 

Start Date: October 01, 2006 

Length: 36 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 06 $146,562; FY 07 $149,533; FY 08 $149,895; FY 09 (No-cost extension 

through 09/30/2010); FY 10 (No-cost extension through 09/30/2011); FY 11 (No-cost extension through 

09/30/2012); FY 12 (No-cost extension through 09/30/2013)

Abstract: The purpose of this study is to design and evaluate an automatic cochlear implant fitting 

algorithm based on a paired comparison adaptive approach to guide audiologists in choosing the best 

frequency allocation for the individual client. Frequency allocation can impact speech recognition abilities and in turn communication. This work entails a systematic search for an optimum frequency allocation using a modified Simplex procedure. This study consists of three experiments. The first experiment 

is the discrimination of frequency analysis band wherein minimally detectable differences in frequency 

shifts along the electrode array are identified. In the second experiment, subjects are computer-guided 

to search for an optimal frequency allocation among cells in a matrix, with the results from experiment 

one defining the cell content. The third experiment, the speech battery test, consists of speech perception 

experiments with the new map using nonsense syllable, phoneme, and sentence stimuli. Experiments 

two and three are recursively conducted until the results converge with up to six sessions per subject 

required to finish the experiment. During the subject’s first and last visits, he/she completes the Communication Profile for the Hearing Impaired and a questionnaire similar to the Abbreviated Profile of 

Hearing Aid Benefit. Four normal hearing native English speakers evaluate the experimental procedure 

and the speech processing algorithm. Fifteen post-linguistically deafened Nucleus 24 cochlear implant 

users complete the study. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-26

Field Initiated Projects (FIPs) 

District of Columbia 

The Captioned Braille Radio Initiative: Providing Emergency Information for Individuals who 

are Deaf-Blind 

National Public Radio 

NPR Labs 

635 Massachusetts Avenue NW 

Washington, DC 20001-3753 

mstarling@npr.org 

www.nprlabs.org 

Principal Investigator: Mike Starling 

Public Contact: 202/513-2484; Fax: 202/513-3024 

Project Number: H133G090139 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: Joseph A. DePhillips 

NIDRR Funding: FY 09 $200,000; FY 10 $200,000; FY 11 $200,000; FY 12 (No-cost extension 

through 11/30/2012)

Abstract: This project focuses research activities on the standardization of a Captioned Braille Digital 

Radio service model designed to serve consumers who are deaf-blind. Individuals who are deaf-blind 

require technology that will allow them to obtain the same important information hearing consumers 

take for granted, such as emergency alerting, disaster relief information, weather, traffic reports, school 

closings, and breaking news. During emergencies, Americans rely on radio for crucial information to 

guide their decisions and behavior. The development of captioned radio for the deaf and hard-of-hearing 

is well under way. This project has already yielded a nationwide demonstration of a captioned radio 

system with off-the-shelf transmission equipment and reference receivers. Designing and implementing these Captioned Braille Digital Radio standards concurrently along with those of Captioned Radio 

creates a single unified accessibility standard that can be supported by all digital radio broadcasters and 

receiver manufacturers for both Type I and Type II Braille, including buffering for store and replay. The 

envisioned Captioned Braille Digital Radio service is designed to work with USB and Bluetooth connections to the consumer’s existing electronic braillers. Service design tests and implements an effective 

menu structure, and provides porting support for bed-shakers and other assistive devices for activation 

during overnight emergencies generating immediate evacuation or shelter in place instructions, such as 

wildfires or tornados. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-27

Field Initiated Projects (FIPs) 

District of Columbia 

Over-Ground Gait Training with a Novel Dynamic Body-Weight Support System 

National Rehabilitation Hospital 

102 Irving Street NW, Room 1261 

Washington, DC 20010 

ryersu@aol.com 

Principal Investigator: Susan Ryerson, PhD 

Public Contact: 202/877-1889

Project Number: H133G100174 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 10 $200,000; FY 11 $200,000; FY 12 $200,000

Abstract: This research study determines whether intensive, over-ground gait training using a novel dynamic body-weight support system called ZeroG leads to greater improvements in walking ability than 

conventional physical therapy in individuals with acute hemiparetic stroke. The subject sample consists 

of 60 individuals with acute stroke, who are randomized into two groups: (1) conventional physical 

therapy focused on gait-specific tasks, and (2) gait training with the ZeroG dynamic body-weight support system. ZeroG is a new over-ground body-weight support system allowing individuals with gait 

disorders to practice walking over smooth or uneven surfaces, up and down stairs, and around curved 

walkways without the reliance on assistive devices such as canes or walkers in a safe, controlled manner. Subjects are trained daily during their inpatient stay, then 2 to 3 days per week as an outpatient for 

total maximum of 24 one-hour sessions. Improvements in walking ability and lower limb motor function 

are evaluated at baseline, after session 24, and at a 6-month follow-up, and include self-selected overground walking speed, endurance, balance, strength, lower limb impairment measures, gait analysis, 

and quality of life measures. Using the above criteria, the ZeroG gait training system is evaluated for the 

facilitation of the recovery of stable over-ground walking patterns in acute stroke patients beyond the 

gains experienced using conventional gait training interventions. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-28

Field Initiated Projects (FIPs) 

District of Columbia 

Prosody and Voice Characteristics of Children with Cochlear Implants 

The George Washington University 

2115 G Street Northwest

Hall of Government, Room 207

Washington, DC 20052 

jmahshie@gwu.edu 

Principal Investigator: James Mahshie, PhD 202/994-2052 

Public Contact: 202/994-2052

Project Number: H133G120272 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Vanessa Tesoriero 

NIDRR Funding: FY 12 $199,967; FY 13 $199,498; FY 14 $198,256

Abstract: This project examines the prosodic and voice characteristics of 40 children with cochlear 

implants (CIs) in two groups – a 4-5 year old group and a 7-8 year old group. For comparison, matched 

groups of hearing children are also studied. In addition to examining how prosodic and voice characteristics differ between younger and older children with CIs, this work permits identification of those characteristics that differ from those of hearing children and that persist despite experience with the implant. 

This project also examines the relative contribution of prosodic and voice attributes to overall speech 

intelligibility in CI children, analyzing the co-occurrence of prosodic and voice issues with measures 

of other features such as vocabulary and articulation that can influence spoken language communication. Finally, the project explores selected acoustic factors in the CI children’s productions to explain the 

acoustic and production bases for their 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-29

Field Initiated Projects (FIPs) 

Florida 

Development of an Intelligent Assistive Robotic System for Individuals with Multiple Sclerosis 

University of Central Florida 

12424 Research Parkway, Suite 400 

Orlando, FL 32826 

abehal@ucf.edu 

www.eecs.ucf.edu/~abehal 

Principal Investigator: Aman Behal, PhD 407/882-2820 

Public Contact: Fax: 407/882-2819 

Project Number: H133G120275 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 12 $199,837; FY 13 $198,842; FY 14 $199,957

Abstract: Individuals with multiple sclerosis (MS) may use a power wheelchair for mobility and require 

caregiver assistance to perform activities of daily living (ADL tasks). Wheelchair Mounted Robotic 

Arms are capable of assisting with these ADL tasks as they are highly versatile and can work in unstructured environments. In recent laboratory and field demonstrations researchers at UCF’s Assistive Robotics Laboratory have shown the ability for a computer to see, recognize, and track environmental objects 

using a robot-mounted stereo camera head – this has allowed for segmentation of robotic movements 

into fine and gross components which can better serve the needs of users with disabilities. This project 

develops and implements two variants of a motion control paradigm for an intelligent assistive robotic 

arm relevant to users with MS, namely, (a) hybrid control mode (user plans and executes gross translation for the robot while computer plans and executes automatic motion for fine translational/rotational 

adjustments), and (b) fully automatic control mode (computer plans and executes automatic motion for 

both gross and fine motion). To ensure safety, the robot motion in both these modes are used under user 

supervision using a variety of access devices. The designs are evaluated periodically at Orlando Health’s 

MS Comprehensive Care Center by a sample of the target MS population to provide feedback to the research team for refining the design of the human computer interface as well as the underlying computer 

vision, computation, and control software. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-30

Field Initiated Projects (FIPs) 

Georgia 

Virtual Home Modifications Education Assistant (VHMEA) for Educators, Students, and 

Consumers 

Georgia Tech Research Corporation 

Center for Assistive Technology and Environmental Access (CATEA) 

490 Tenth Street Northwest 

Atlanta, GA 30332-0156 

robert.todd@coa.gatech.edu 

Principal Investigator: Robert L. Todd 

Public Contact: 404/894-9865; Fax: 404/894-9320 

Project Number: H133G120204 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Joyce Y. Caldwell 

NIDRR Funding: FY 12 $599,189; FY 13 $1 (Funds for FY 2013 were funded using FY 2012 program 

money); FY 14 $1 (Funds for FY 2014 were funded using FY 2012 program money)

Abstract: This project develops an online Virtual Home Modifications Education Assistant (VHMEA) 

for educators and students in building construction, design, occupational therapy, and rehabilitation 

disciplines; professionals in housing fields; users of the built environment; and consumers with disabilities. When complete, the VHMEA features an online, virtual home that demonstrates the need for home 

modifications for people with disabilities, allowing users to encounter problems, solve them, and examine the results of modifications and universal design (UD) efforts. The VHMEA trains users on how 

modifications and UD can reduce issues of disability and aging by ameliorating environmental barriers. 

Project aims are to: (1) demonstrate the impact of barriers and facilitators in the built environment; (2) 

develop a dynamic teaching tool that will allow educators and students to participate across distances, 

eliminating educational barriers; (3) allow students to learn home modifications and the use of assistive 

technologies by doing; (4) create a user experience that will increase the use of UD principles in teaching and practice; and (5) help consumers make choices on accommodations and improve self-advocacy. 

The VHMEA allows users to explore the 3-D virtual home through the use of customizable character 

avatars. The home simulates barriers and the uses of UD, targeted accommodations, and assistive technologies. It provides interactivity with simulated features of the home. Multiple users can interact with 

each other and the environment, and explore with avatars that simulate multiple disabilities and the 

effects of aging in the home. Accommodation solutions are keyed to the Assistivetech.net database of 

products for individuals with disabilities (www.assistivetech.net), allowing users to reference real-world 

solutions to problems. Large classes as well as small group or individuals may use VHMEA for instruction as distance education, an in-class demonstration tool, or solo exploration by consumers.
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-31

Field Initiated Projects (FIPs) 

Illinois 

Video Gaming Technology to Promote Health and Fitness Among Adolescents with Disabilities 

University of Illinois at Chicago 

Institute on Disability and Human Development 

1640 West Roosevelt Road, Suite 713 

Chicago, IL 60608-6904 

Principal Investigator: Jennifer L. Rowland, PhD, PT 

Public Contact: 312/413-1850

Project Number: H133G080120 

Start Date: October 01, 2008 

Length: 36 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 08 $183,463; FY 09 $168,672; FY 10 $185,853; FY 11 (No-cost extension 

through 9/30/2012); FY 12 (No-cost extension through 9/30/2013)

Abstract: This project adapts active video games for use by youth with physical disabilities, and assesses their feasibility and effectiveness as an exercise modality for increasing energy expenditure and 

improving cardiorespiratory fitness. The study is conducted in three phases: Phase I: Adaptation and 

Feasibility Testing; Phase II: Dose-Response Energy Expenditure; and Phase III: Cardiorespiratory 

Fitness Trial. In Phase I, adaptations are implemented that allow youth with disabilities to play active 

video games using upper extremity movement to participate in the games. The accessibility and safety of 

these adaptations is assessed through pilot testing, and, if necessary, modifications to the adapted video 

games are made based on participant feedback and observation. Researchers collect exercise intensity 

data associated with various games designed for both EyeToyTM (ET) and Dance, Dance RevolutionTM 

(DDR) devices. This data is used to classify specific games into mild, moderate, and vigorous activity. 

Phase II examines the dose-response relationship between energy expenditure and exercise intensity for 

both active video games and a standard exercise modality for individuals with disabilities (arm cycling). 

Participants complete energy expenditure assessments for three levels of intensity (mild, moderate, and 

vigorous) for each exercise modality (arm cycling, DDR, and ET). Phase III is a randomized controlled 

trial examining the effects of active video games compared to arm cycling and normal activity controls 

in improving cardiorespiratory fitness in adolescent manual wheelchair users. Participants in both intervention groups take part in a 10-week, 3 days/week exercise training program designed to increase 

aerobic capacity. Primary outcome measures include cardiorespiratory fitness, energy expenditure, and 

satisfaction with physical activity. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-32

Field Initiated Projects (FIPs) 

Illinois 

Development of an Advanced Prosthetic Microcontroller System 

Rehabilitation Institute of Chicago (RIC) 

345 East Superior Street, Room 1124 

Chicago, IL 60611-2654 

aes@northwestern.edu 

Principal Investigator: Todd A. Kuiken, MD, PhD 

Public Contact: Amiee E. Schultz 312/238-1362; Fax: 312/238-2081 

Project Number: H133G100107 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 10 $199,572; FY 11 $199,647; FY 12 $199,966

Abstract: This project develops a compact control system for upper-limb prostheses that includes an 

advanced controller and a miniaturized analog front end for conditioning incoming electromyogram 

signals. The controller implements advanced prosthesis control strategies, such as pattern recognition, 

as well as conventional myoelectric control strategies. The control system is small enough to be embedded in transradial prosthesis and is capable of seamlessly integrating with existing prosthetic components; thereby, offering increased functionality and flexibility to a variety of individuals with upperlimb amputation without requiring the excessive costs of new prosthetic components. In addition, the 

controller is designed to easily incorporate advances in microprocessor design and control algorithms, 

and to integrate with emerging technology, such as sensory feedback devices for amputees. The control 

system is developed and tested in stages, beginning with designing and testing a benchtop system. Next 

a non-optimized embedded system is designed and tested followed by an optimized embedded system. 

Both the benchtop system and the optimized embedded system are used for functional testing in addition 

to the electronic testing. The control system is tested at each stage for its ability to control conventional 

prosthetic devices. This is made possible by the device adaptor developed along with the controller and 

analog front end. The final embedded system is tested by subjects with upper-limb amputations using 

both conventional and pattern recognition control to perform a variety of functional tests. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Field Initiated Projects (FIPs) 

Illinois 

The Development of a Commercial Rehabilitation Device to Regain Arm Function Following 

Stroke 

Northwestern University 

Feinberg School of Medicine

Department of Physical Therapy and Human Movement Sciences 

645 North Michigan Avenue, Suite 1100 

Chicago, IL 60611 

a-acosta@northwestern.edu 

www.feinberg.northwestern.edu/nupthms 

Principal Investigator: Ana Maria Acosta, PhD 

Public Contact: 312/908-8160

Project Number: H133G100208 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 10 $197,710; FY 11 $197,888; FY 12 $197,635

Abstract: This project develops an interactive, low-cost, and inherently safe 3-D passive arm coordination training device (PACT-3D) designed to reduce the negative effect of gravity during reaching movements with the paretic upper limb. Previous results have shown that moderately to severely affected 

chronic stroke subjects can be trained to increase their active reaching range of motion using a progressive shoulder abduction loading paradigm, thus giving rise to this device development project. The 

PACT-3D is designed for use with any seating system. The PACT-3D system provides high-resolution 

measurements of functional performance (reaching workspace) that are readily employed in assessing the effectiveness of rehabilitation interventions. Additionally, the commercial PACT-3D system is 

designed for use as an assistive device and for the implementation of novel rehabilitation interventions 

increasing the functional reaching abilities of individuals with stroke. The system provides a safe and 

relatively compact intervention/measurement device that can be deployed easily even in the smallest 

clinics or at home. Project activities include: (1) developing a prototype of the device incorporating 

patented limb weight modulating technology, (2) developing a second prototype that includes automated 

weight support control with real-time visual feedback for measurement and therapeutic applications, and 

(3) testing the performance of the PACT-3D in the measurement of reaching movements and arm workspace for various levels of shoulder abduction loading in individuals with chronic hemiparetic stroke. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Field Initiated Projects (FIPs) 

Illinois 

Development of a Low-Cost Dilatancy-Based System for Orthotic Fabrication 

Northwestern University 

Feinberg School of Medicine

Department of Physical Medicine and Rehabilitation 

680 North Lake Shore Drive, Suite 1100 

Chicago, IL 60611 

y-wu@northwestern.edu 

www.nupoc.northwestern.edu 

Principal Investigator: Yeongchi Wu, MD 

Public Contact: 312/503-5700

Project Number: H133G110266 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 11 $178,097; FY 12 $169,159; FY 13 $179,996

Abstract: This project creates a dilatancy (vacuum-based) system that enables low-cost and rapid fabrication of orthoses. The project goal is to design and evaluate an orthotic dilatancy casting system for 

capturing the impression of a body part in order to fabricate a custom orthosis biomechanically individualized for the person with disability. This system would replace the conventional method of taking 

impressions using plaster bandages. The project has four phases: (1) Design and Laboratory Testing 

Phase—Develop equipment and procedures and to conduct laboratory testing on positive plaster models. 

(2) Clinical Evaluation Phase—Conduct clinical evaluations of new orthotic fabrication system on research subjects. (3) Review and Demonstration Phase—Demonstrate new orthotic dilatancy fabrication 

systems to practicing orthotists and students receiving orthotics education to acquire feedback and suggestions for further refinement. (4) Knowledge Translation Phase—Prepare detailed technical manuals 

for each validated orthotic dilatancy fabrication system for knowledge translation and hold workshops to 

train orthotists. Efforts are focused on five different types of orthoses that are commonly prescribed and 

fitted by orthotists: foot orthosis, ankle-foot orthosis, knee orthosis, knee-ankle-foot orthosis, and spinal 

orthosis. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-35

Field Initiated Projects (FIPs) 

Illinois 

The Effect of Resistance to Participant-Supported Reaching on Workspace of the Hand in Severe 

Chronic Stroke 

Northwestern University 

Feinberg School of Medicine

Department of Physical Therapy and Human Movement Sciences 

645 North Michigan Avenue, Suite 1100 

Chicago, IL 60611 

m-ellis@northwestern.edu 

fsmweb.northwestern.edu/faculty/facultyprofile.cfm?xid=16894 

Principal Investigator: Michael D. Ellis, DPT; Julius Dewald, PhD; Ana Maria Acosta, PhD

Public Contact: Michael D. Ellis, DPT 312/503-4435; Fax: 312/908-0741 

Project Number: H133G110245 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 11 $197,732; FY 12 $196,422; FY 13 $197,094

Abstract: This study utilizes the ACT3D robot, developed as part of a previous NIDRR project, to incorporate resistance to reaching while accounting for the known benefits of progressive abduction loading in individuals with severe chronic stroke. Disturbances in movement coordination are the least well 

understood but often the most debilitating with respect to functional recovery following stroke. These 

deficits in coordination are expressed in the form of abnormal muscle synergies and result in limited and 

stereotypic movement patterns that are functionally disabling. The result of these constraints in muscle 

synergies is an abnormal coupling between shoulder abduction and elbow flexion (i.e. the flexion synergy), which significantly reduces the reaching function of an individual with stroke when they lift up the 

weight of the impaired arm against gravity. In this project, two groups practice reaching under abduction 

loading; however, the experimental group also moves against resistance while reaching. Previous neurotherapeutic research has shown that the abnormal synergy between shoulder abduction and elbow flexion 

can be significantly reduced thus increasing total reaching range of motion in individuals with severe 

stroke. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-36

Field Initiated Projects (FIPs) 

Illinois 

Design and Development of a Novel Body-powered Prehensor and Hand 

Rehabilitation Institute of Chicago (RIC) 

345 East Superior, Room 1309 

Chicago, IL 60611 

j-sensinger@northwestern.edu 

Principal Investigator: Jonathon W. Sensinger, PhD 

Public Contact: 312/238-6036; Fax: 312/238-2081 

Project Number: H133G120059 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 12 $198,621; FY 13 $199,576; FY 14 $198,704

Abstract: This project develops novel body-powered terminal devices for upper-limb prostheses that 

provide significantly greater function than currently available options and that are both clinically and 

commercially viable. Body-powered prostheses are the most commonly used type of device, and offer 

two terminal device options: a prehensor (hook) or a hand. Because of superior functionality, prehensors 

are often chosen over hands; however, although they are lightweight, robust, and relatively inexpensive, 

they are non-anthropomophic and not aesthetically pleasing. Body-powered hands look somewhat more 

natural, but are heavy, more expensive, and provide comparatively poor function. For both of these device categories, users must choose between voluntary opening (VO) or voluntary closing (VC) devices, 

options that differ both in their inherent advantages and functional drawbacks. This project refines and 

tests a design for a body-powered prehensor that combines the features of both VO and VC devices: a 

body-powered hand that provides multiple grasps, fingers that can be used in power grips or locked out 

of the way to allow precision grips, a passive thumb that can be used to select different grip patterns, and 

a novel VO/VC switch. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-37

Field Initiated Projects (FIPs) 

Illinois 

The Development of a Real Time Platform for Intuitive Control of Grasp and Release During 

Functional Arm Activities Following Stroke 

Northwestern University 

645 North Michigan Avenue, Suite 1100 

Chicago, IL 60611 

j-yao4@northwestern.edu 

Principal Investigator: Jun Yao, PhD 312/908-8160 

Public Contact: 312/503-2936

Project Number: H133G120287 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 12 $198,020; FY 13 $198,020; FY 14 $198,020

Abstract: This project develops a reliable and intuitive control of an assistive device for the hand (ReInHAND) to provide reliable hand control during functional arm activities following stroke. Specific aims 

of the project are to: (1) develop a series of algorithms for the detection of hand grasp, release, and rest 

of moderate to severely impaired stroke survivors during different arm activities; (2) implement the 

developed algorithm into a real-time platform to control an electric stimulation device to assist the hand 

movements; and (3) test the performance of the developed platform. To further improve the performance 

of the platform, researchers: (1) collect data from individuals with moderate to severe stroke in wellcontrol, robot-mediated haptic environments using the Arm Coordination Training 3-D robot developed 

by Dewald Rehab Tech, LLC; and (2) use novel methods to reduce the impact from flexion synergy, thus 

improving the platform’s performance. This project is a consortium between Northwestern University, 

Dewald Rehab Tech, LLC, Simple System, Inc., and Biodex Medical Systems, Inc. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-38

Field Initiated Projects (FIPs) 

Illinois 

Building the Foundation of Clinical Practice of EMG Pattern Recognition for Prosthetic Arm 

Control 

University of Rhode Island 

University of Rhode Island

Department of Electrical, Computer & Biomedical Engineering

Four East Alumni Avenue

Room A-116; Kelley Annex

Kingston, RI 02881 

huang@ele.uri.edu 

www.ele.uri.edu/faculty/huang 

Principal Investigator: He Huang, PhD 

Public Contact: 401/874-2385; Fax: 312/238-2081 

Project Number: H133G120165 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Joyce Y. Caldwell 

NIDRR Funding: FY 12 $599,604; FY 13 $1 (Funds for FY 2013 were funded using FY 2012 program 

money); FY 14 $1 (Funds for FY 2014 were funded using FY 2012 program money)

Abstract: This project improves the function of upper limb prostheses by developing a reliable, robust, 

and clinically-viable prosthesis control system based on electromyography (EMG) pattern recognition 

(PR). Conventional prosthesis control (i.e. body-powered or proportional EMG control) is inadequate 

for multifunctional prostheses operation. Research in laboratory has shown that EMG PR enables transradial (TR) amputees or above-elbow amputees with targeted muscle reinnervation surgeries to control 

multiple degrees of freedom of a prosthesis intuitively and efficiently. Unfortunately, no commercially 

available prosthetic arms use EMG PR control scheme due to several challenges for clinical practice, 

including high computational complexity, lack of wearability, poor robustness, and need for frequent recalibrations. The objective of this project is to develop new technologies and engineering solutions that 

resolve the difficulties in current EMG PR-based prosthesis control, advancing its adoption in practice. 

The design incorporates: (1) an optimized EMG PR algorithm for accurate, reliable, and responsive user 

intent recognition; (2) novel sensor fault detectors, system recovery technologies, and spatial filtering 

approaches to ensure the robustness of the sensor interface and EMG PR system; (3) a new wearable 

and user-friendly calibration interface integrated with a prosthesis-guided calibration program; and (4) 

embedded implementation of advanced control algorithms specifically tailored to the hardware structure 

for fast and accurate algorithm execution with power efficiency. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-39

Field Initiated Projects (FIPs) 

Illinois 

Development of a Web-Based Nemeth Code (Braille Mathematics) Tutorial for Use by Individuals 

Who Are Blind 

Northern Illinois University 

Research and Development Institute 

PO Box 351 

Sycamore, IL 60178 

gkapperman@niu.edu 

Principal Investigator: Gaylen Kapperman, EdD 

Public Contact: 815/895-3078; Fax: 815/753-8594 

Project Number: H133G110122 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Joseph A. DePhillips 

NIDRR Funding: FY 11 $199,999; FY 12 $199,999; FY 13 $199,999

Abstract: This project develops and disseminates a downloadable, interactive Braille math tutor, a tool 

to help Braille readers become fluent in Nemeth Code, the Braille code for mathematics, on an independent basis. Many people who read Braille lack the opportunity to learn Nemeth Code through the conventional method because of the scarcity of teachers who possess this competency, or through independent study because of limitations (expense and obsolescence) of the only Nemeth Code tutor currently 

available which is accessible to blind people. This web-based tutorial is developed to be compatible with 

the full range of mainstream technology products, including Windows and Macintosh computers, as well 

as tablets and hand-held devices. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-40

Field Initiated Projects (FIPs) 

Kansas 

Experimental Evaluation of the Online and Applied System for Intervention Skills (OASIS) 

Training Program Using Video-Conferencing for Parents of Children with an Autism Spectrum 

Disorder 

University of Kansas Medical Center 

Center for Child Health and Development 

3901 Rainbow Boulevard, MSN 4003 

Kansas City, KS 66160 

lhpowell@ku.edu 

www.lsi.ku.edu/research/projects/Heitzman-Powell_L/autism_children_technologies.shtml 

Principal Investigator: Linda S. Heitzman-Powell, PhD; Jay Buzhardt, PhD; 913/945-6604 

Public Contact: 913/588-5588; Fax: 913/588-5916 

Project Number: H133G090136 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: Doris Werwie, PhD 

NIDRR Funding: FY 09 $199,910; FY 10 $199,346; FY 11 $199,979; FY 12 (No-cost extension 

through 09/30/2013)

Abstract: This project evaluates the Online and Applied System for Intervention Skills (OASIS) Training Program, a program that uses a Research-to-Practice Outreach Training model to teach parents of 

children with an autism spectrum disorder (ASD) how to implement empirically-based interventions 

with their children. The evaluation of the OASIS program includes two studies. The purpose of Study 1 

is to: (1) conduct a between-group experimental analysis of the effectiveness of the final iteration of the 

OASIS training program developed during a previously funded development project; and (2) conduct a 

within-subject analysis of the effects of OASIS on parent knowledge and skill fluency with implementation of behavioral techniques with their child, family quality of life, and child language and social 

engagement post treatment and during follow-up measures. The purpose of Study 2 is to assess the longterm impact of the OASIS program on parents and children who previously completed training. Study 2 

continues collection of family outcome, intervention-specific, and child outcome data on families who 

have experienced the OASIS intervention as a part of the intervention development phase in order to 

obtain preliminary information about long term effects. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-41

Field Initiated Projects (FIPs) 

Kentucky 

In-depth Assessment of Wheelchair Ramp Activities and Incidents on Public Transit Buses 

University of Louisville 

Department of Mechanical Engineering

Injury Research, Assessment & Prevention Lab 

500 South Preston Street

Instructional Building B, Room 110 

Louisville, KY 40202 

Principal Investigator: Karen L. Frost, PhD 

Public Contact: 502/852-0279

Project Number: H133G110074 

Start Date: November 01, 2011 

Length: 24 months 

NIDRR Officer: William V. Schutz, PhD, MSW, MPH 

NIDRR Funding: FY 11 $120,097; FY 12 $79,903

Abstract: This study consists to two interrelated tasks designed to gain an improved understanding of 

factors influencing wheeled mobility device (WhMD) user boarding and alighting incidents: (1) a nationwide survey of WhMD users to quantify and characterize ramp-related incidents; and (2) prospective 

monitoring and assessment of WhMD user ramp usage on public transit buses utilizing onboard video 

cameras, combined with digital ramp slope measurements. Research indicates that current ADA guidelines for maximum allowable ramp slope are prohibitively steep for WhMD user ascent and descent, and 

ADA minimum ramp width guidelines present challenges to even the most experienced WhMD users 

when boarding or alighting the bus. Data from this study informs WhMD ramp-related legislation and 

policy, and allows for the development of WhMD ramp design guidelines and operational recommended 

best practices. The outcomes from this study further advance long-term goals of increasing WhMD user 

safety, accessibility, and usability on public transit buses. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-42

Field Initiated Projects (FIPs) 

Massachusetts 

Access to Electronic and Personal Health Records 

WGBH Educational Foundation 

National Center for Accessible Media 

One Guest Street 

Boston, MA 02135 

ncam@wgbh.org 

ncam.wgbh.org 

Principal Investigator: Larry Goldberg 

Public Contact: 617/300-3722; Fax: 617/300-1035 

Project Number: H133G110095 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 11 $200,000; FY 12 $200,000; FY 13 $200,000

Abstract: This project integrates accessibility requirements with usability factors in development and 

evaluation of prototypes to make electronic health record systems (EHRs), personal health records 

(PHRs), and technology-based patient information accessible to people who have disabilities. Project activities and deliverables include: Development of field-derived user requirements including a gap analysis of accessibility and usability barriers within technology-based personal health records and patient 

education information products or services, offered across the continuum of inpatient, outpatient and 

home-care services provided by hospitals, clinics, and skilled-nursing and independent-living facilities; 

prototype development informed by user requirements and complex use cases which meet both usability 

and accessibility criteria for providing equal and meaningful access to the range of medical and healthcare information offered via EHRs/PHRs; and participation in national health IT usability and standard 

initiatives to promote review of use cases and prototypes and support inclusion of accessibility requirements in EHR and PHR requirements and certification processes. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-43

Field Initiated Projects (FIPs) 

Michigan 

Preparations for In-Home Testing of Brain-Computer Interfaces Operating Assistive Technology 

University of Michigan 

MIB C640 

1500 East Medical Center Drive 

Ann Arbor, MI 48109-5841 

janeh@umich.edu 

www.umich.edu/~umdbi 

Principal Investigator: Jane Huggins, PhD 

Public Contact: 734/936-7170; Fax: 734/936-7515 

Project Number: H133G090005 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 09 $199,999; FY 10 $199,997; FY 11 $199,996; FY 12 (No-cost extension 

through 9/30/2013)

Abstract: This project prepares for in-home testing of brain-computer interfaces (BCIs) among target user populations across the lifespan, including people with amyotrophic lateral sclerosis, muscular 

dystrophy, spinal cord injury, and cerebral palsy. BCIs have long been used in the laboratory; although 

their capabilities have for several years seemed sufficient to be of benefit to people with the most severe 

physical impairments, they have not been available for purchase or in-home use. While the BCI field 

has been rapidly expanding in numbers of related publications, research has largely focused on signal 

processing advances, not on practical hurdles to home use of BCIs. Only in the last few years have BCIs 

been taken out of the laboratory for testing in home environments where they can have a real impact on 

independence and employment. However, the input of people with physical impairments has not been 

pursued in an organized fashion by BCI researchers. The specific aims of the project are: (1) develop 

improved BCI cursor movement capabilities for integration with computer-based assistive technologies, 

(2) demonstrate and quantify the ability of subjects from potential target user populations to functionally use BCIs, and (3) identify and quantify the design considerations that are of the highest priority to 

people with specific impairments. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-44

Field Initiated Projects (FIPs) 

Michigan 

Addressing Self-Management Skills Through Electronic Gaming: Meeting the Needs of 

Underserved Individuals with SCI 

Regents of the University of Michigan 

325 East Eisenhower Parkway

Burlington Building, 3rd Floor 

Ann Arbor, MI 48108 

mameade@med.umich.edu 

Principal Investigator: Michelle A. Meade, PhD 

Public Contact: 734/936-7205

Project Number: H133G100118 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 10 $199,993; FY 11 $199,997; FY 12 $199,972

Abstract: This project develops an electronic gaming application designed to facilitate skill development and promote the ability of individuals with spinal cord injury (SCI) to manage their health and 

interact more readily in home, health care, and community environments. Non-entertainment games 

that promote self-management skills have been created for asthma, diabetes, safe sex negotiations, and 

promoting nutrition and physical activity, and have been proven to be effective in improving self-care, 

reducing symptoms, minimizing secondary conditions, reducing emergency room visits, and decreasing 

health care costs. Using the self-management program Health Mechanics as a conceptual base, researchers and programmers at the University of Michigan have developed a game tailored for the high-risk 

population of 16- to 24-year-old males with SCI. A game application utilizes an iPod Touch. The game 

application is based on theories of behavior change as well as standard game development and design 

processes. The end-users, individuals with SCI from the target group, play a key role in the development 

process both as members of the Advisory Board and participants in test groups. End-user feedback about 

game graphics, styling, content, and situations, and their feedback about the application’s usability, relevance, and ability to engage them influences all stages of product design. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-45

Field Initiated Projects (FIPs) 

New Jersey 

Improved Weight Bearing Evaluation of Knee Osteoarthritis 

Kessler Foundation 

Kessler Foundation Research Center 

1199 Pleasant Valley Way 

West Orange, NJ 07052 

pbarrance@kesslerfoundation.org 

Principal Investigator: Peter Barrance, PhD 

Public Contact: 973/324-3550; Fax: 973/243-6984 

Project Number: H133G080136 

Start Date: October 01, 2008 

Length: 36 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 08 $199,964; FY 09 $199,480; FY 10 $198,953; FY 11 (No-cost extension 

through 9/30/2012); FY 12 (No-cost extension through 9/30/2013)

Abstract: The objective of this project is to develop refined upright magnetic resonance imaging (MRI) 

and computer modeling methods that allow assessment of patients with osteoarthritis (OA) during 

weight bearing. To optimize available non-surgical OA treatments, refined imaging methods are needed 

to measure changes in knee positioning and cartilage contact while weight bearing. The project builds on 

pilot work that demonstrated the ability to derive quantitative measures of cartilage contact positioning 

from weight bearing MRI images. Three specific focus areas for development are: (1) developing a more 

efficient and accurate method for positioning patients with symptomatic knee OA and determining the 

limits of duration for weight bearing MRI scanning, (2) improving and expanding methods for maintaining consistent measurement reference frames through changing positions and loading conditions, and 

(3) expanding capabilities needed to describe contact area and cartilage depth at the contact sites. Researchers validate the methodological developments using laboratory experiments and a study with OA 

patients when lateral wedge insoles are prescribed to relieve loading of the knee’s medial compartment. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-46

Field Initiated Projects (FIPs) 

New Jersey 

Impact of Prism Adaptation Therapy for Spatial Neglect on Home and Community Outcomes 

Kessler Foundation, Inc. 

1199 Pleasant Valley Way 

West Orange, NJ 07052 

abarrett@kesslerfoundation.org; kcoleman@kesslerfoundation.org

www.kesslerfoundation.org 

Principal Investigator: Anna M. Barrett, MD 973/324-3563 

Public Contact: Kecia Coleman 973/324-3569; Fax: 973/243-6984 

Project Number: H133G120203 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 12 $196,849; FY 13 $198,956; FY 14 $199,951

Abstract: This project examines prism adaptation therapy (PAT), and whether the discovery that spatialmotor aiming neglect predicts better neglect recovery is specific to PAT or whether this classification 

method identifies patients more likely to recover spontaneously. Additionally, the project evaluates the 

impact of receiving two weeks of PAT in the inpatient setting to home and community outcomes at three 

and six months after treatment. Disseminating grant activities and products to clinician and survivor/

family stakeholders through a consumer conference, and training clinician collaborators, is intended to 

result in better clinical practice guidelines, to increase the rate of identification, management, and treatment of spatial neglect, and launch a multi-site clinical trial of PAT at the next research stage. The longterm goal of this research is to reduce falls, accidents, and other morbidity affecting stroke survivors 

with spatial neglect and other hidden disabilities, through methods of patient classification and targeted 

use of PAT and other neglect therapies, to optimize eventual home and community functional outcomes. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-47

Field Initiated Projects (FIPs) 

New York 

Studying Treatments and Effectiveness of Prosthetic Systems (STEPS): Utilizing a Regional 

Collaborative Longitudinal Outcomes Database (CLOUD) 

New York University School of Medicine 

240 East 38th Street, 15 FLOOR 

New York, NY 10016 

jeffrey.heckman@nyumc.org 

Principal Investigator: Jeffrey Heckman, MD 

Public Contact: 212/263-6037

Project Number: H133G120262 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 12 $598,479; FY 13 $1 (Funds for FY 2013 were funded using FY 2012 program 

money); FY 14 $1 (Funds for FY 2014 were funded using FY 2012 program money)

Abstract: This project develops a collaborative longitudinal database of veterans and civilians living 

with amputation to compare and contrast physical and psychosocial outcomes between the two populations in an effort to link prosthetic and orthotic treatments, devices, and supports to patient outcomes. 

The project enrolls individuals with lower limb amputation, including participants with newer amputations and those at least one year post injury. Follow-up interviews provide longitudinal data. As the database matures, it has the ability to examine and ultimately draw evidence-based conclusions regarding 

pertinent issues facing individuals with limb loss, such as heterotopic ossification and pain. Furthermore, 

the database serves as an immediate launching point for pilot studies involving gait and motion analysis, 

advanced biomarker detection for diabetes, and standardization of radiographic limb length measurement, as well as set up long-term research projects designed to develop more efficient and productive 

evidence-based healthcare practices, effectively improving the standard of care. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-48

Field Initiated Projects (FIPs) 

Oregon 

Researching Accessibility Gaps in Transit Hub Communication Systems and Standards 

Oregon State University 

312 Kerr Administrative Building 

Corvallis, OR 97331 

hunterz@engr.orst.edu 

ncat.oregonstate.edu 

Principal Investigator: Katharine Hunter-Zaworski, PhD 

Public Contact: 541/737-4982; Fax: 541/737-3052 

Project Number: H133G090242 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 09 $199,584; FY 10 $199,842; FY 11 $199,309; FY 12 (No-cost extension 

through 09/30/13)

Abstract: This project researches accessibility gaps within communication technologies used in transportation hubs and identifies opportunities for universal and accessible design considerations within 

industry communications standards. This research effort includes coordination with emergency alerting 

initiatives deployed or in development at the national, state, and municipal level, where communications 

interoperability challenges are a serious problem. Research documents the state of communications technologies and practices, both in use and in development; identifies the policies and workflows associated 

with information delivery; determines the transportation industry’s awareness and use of international 

standards for accessible interoperable communications technologies; and produces a gap assessment. 

Research results identify areas needing further study and/or technical solutions and provide a framework 

for policy recommendations and consumer advocacy including: the status of passenger communications technologies, policies, and practices, and the awareness and adoption of accessibility standards 

and specifications within transit hubs; and gaps in communications technologies, information flows, and 

interoperable standards that need to be addressed to safeguard the safety of people with disabilities. This 

is a project of The National Center for Accessible Transportation at Oregon State University and the 

WGBH National Center for Accessible Media. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-49

Field Initiated Projects (FIPs) 

Oregon 

The TATE Project: Training Assistive Technology in the Environment 

Western Oregon University

Teaching Research Institute

99 West 10th Avenue, Suite 370 

Eugene, OR 97401 

ehlhardtl@wou.edu 

Principal Investigator: Laurie Ehlhardt Powell, PhD 

Public Contact: 541/346-0572

Project Number: H133G090227 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: Shelley Reeves 

NIDRR Funding: FY 09 $200,000; FY 10 $199,992; FY 11 $200,000; FY 12 (No-cost extension 

through 09/30/2013)

Abstract: This project has developed and evaluated a systematic instructional package for training assistive technology for cognition (ATC) in the environment for people with acquired brain injury. The TATE 

ATC Toolkit has been developed and evaluated in three phases. Phase 1 (Development) included focus 

groups with individuals with ABI, caregivers, support staff, and professionals as well as initial pilot testing of the Toolkit materials. Phase 2 (Evaluation) experimentally evaluated selected components of the 

Toolkit in a single case, multiple baseline across behaviors study. Phase 3 (Feasibility/Field Testing; in 

process) has evaluated trainers’ use of the Toolkit in everyday settings. Trainers include clinicians, job 

coaches, and caregivers working in outpatient clinics and supported living communities. Outcome data 

measures have included device use (device skill acquisition), device usability (skills used in targeted 

environments), functional performance (activities of daily living impacted by device use), quality of life 

(subjective well-being), and social participation (community integration). Dissemination of the final version of the Toolkit will occur at the end of Phase 3. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-50

Field Initiated Projects (FIPs) 

Oregon 

Development of a Web-based Tool for Families Impacted by the Cognitive, Behavioral, and Social 

Challenges of Traumatic Brain Injury 

Western Oregon University

Teaching Research Institute

Center on Brain Injury Research and Training (CBIRT) 

99 West 10th Avenue, Suite 370 

Eugene, OR 97401 

glanga@cbirt.org 

www.cbirt.org 

Principal Investigator: Ann E. Glang, PhD 

Public Contact: 541/346-0594; Fax: 541/346-0599 

Project Number: H133G100153 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 10 $200,000; FY 11 $200,000; FY 12 $200,000

Abstract: This project develops and evaluates the efficacy of an interactive, web-based information and 

training program: TBI Family Support: Interactive Program for Families Impacted by the Cognitive, 

Behavioral, and Social Challenges of TBI improves family member knowledge and skill in supporting a 

loved one experiencing cognitive, behavioral, and social challenges of traumatic brain injury (TBI). Currently no comprehensive, accessible tool exists to assist families affected by TBI to become informed 

about and manage the complex challenges of TBI. Interactive multimedia has been shown to be effective 

in providing the type of specific video-based training needed by families supporting a loved one with 

TBI. The TBI Family Support site is developed, tested, and revised in partnership with a national group 

of consultants, family members, individuals with TBI, researchers, and practitioners. Product testing 

occurs across three phases, culminating in a randomized control trial with a national sample of family 

members of individuals with TBI. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

3-51

Field Initiated Projects (FIPs) 

Texas 

Development of a Virtual Reality Weight Management Intervention for Women with Mobility 

Impairments 

Baylor College of Medicine 

Center for Research on Women with Disabilities (CROWD) 

1333 Moursund Avenue, Suite A221 

Houston, TX 77030 

mnosek@bcm.edu 

Principal Investigator: Margaret A. Nosek, PhD 

Public Contact: 713/799-5086

Project Number: H133G120192 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 12 $599,997; FY 13 $1 (Funds for FY 2013 were funded using FY 2012 program 

money); FY 14 $1 (Funds for FY 2014 were funded using FY 2012 program money)

Abstract: This project develops and pilot tests the first evidence-based weight management program 

designed to meet the unique needs of women with mobility impairments. The goal is to use a community-based participatory and multidisciplinary approach to develop and pilot test a weight management 

intervention that: (1) responds to the unique needs and expressed concerns of women with mobility 

impairments, (2) builds on prior weight management research conducted on adults in general, and (3) is 

delivered using virtual reality on the Internet. Project objectives are to: Adapt a face-to-face, evidencebased weight loss program for adults, the Lifestyle Change Program curriculum from the Diabetes 

Prevention Program, to GoWoman, an Internet-based, virtual reality weight loss intervention that responds to the specific needs of women with mobility impairments; pilot test the Internet-based weight 

management intervention; and disseminate the results of this project in the form of postings to the 

Center for Research on Women with Disabilities website for lay and professional audiences, publications 

in refereed journals, and podcasts and online illustrated lectures on approaches to weight management 

for women with mobility impairments. The project is a consortium of four institutions -- the Center for 

Research on Women with Disabilities at Baylor College of Medicine, the Texas Obesity Research Center 

at the University of Houston, the Rural Institute at the University of Montana, and Case Western Reserve 

University Medical School. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Field Initiated Projects (FIPs) 

Utah 

Experimental Research on Pedestrian and Evacuation Behaviors of Individuals with Disabilities; 

Theory Development Necessary to Characterize Individual-Based Models 

Utah State University 

Center for Persons with Disabilities

Landscape Architecture and Environmental Planning 

4005 Old Main Hill 

Logan, UT 84322 

keith.christensen@usu.edu 

Principal Investigator: Keith Christensen, PhD 

Public Contact: 435/797-0507; Fax: 435/797-0503 

Project Number: H133G110242 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 11 $199,606; FY 12 $196,177; FY 13 $198,699

Abstract: The purpose of this study is to measure and collect the pedestrian and evacuation behaviors 

of individuals with mobility-related disabilities through a series of the controlled and evacuation experiments using new radio-frequency identification (RFID) technology complemented by video tracking 

methods. The results are both microscopic and macroscopic evacuation behavior data sets necessary 

for the development of well-characterized individual-based theories and models which reflect the observed patterns of evacuation behavior of a diverse population. The research objectives are to: (1) develop automated methods for measuring pedestrian trajectories in both controlled built and evacuation 

environments using RFID and video tracking technologies, (2) collect the pedestrian behavior data of 

individuals with mobility-related disabilities by experimentally observing and measuring key behaviors 

in controlled built environments, (3) collect the evacuation behavior data of individuals with mobilityrelated disabilities by observing and measuring key behaviors in realistic evacuation environment, and 

(4) calibrate macroscopic pedestrian flow relationships and evacuation curves from the microscopic pedestrian trajectories that are necessary for building credible and valid pedestrian and evacuation models. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Field Initiated Projects (FIPs) 

Wisconsin 

Agricultural Assistive Technology Training 

Easter Seals Wisconsin, Inc. 

101 Nob Hill Road, Suite 301 

Madison, WI 53713 

pleverenz@eastersealswisconsin.com 

Principal Investigator: Paul Leverenz 

Public Contact: 608/225-2394

Project Number: H133G100195 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 10 $187,152; FY 11 $194,728; FY 12 $200,000

Abstract: Agricultural workers with disabilities across the nation struggle to continue farming despite 

their disability. This collaborative partnership creates a cost effective, online distance learning course 

designed for vocational rehabilitation (VR) professionals in five states, developing training opportunities 

and materials to assist VR staff nationwide to see agriculture as a successful vocational rehabilitation 

outcome and to be better prepared to assist farmers with disabilities achieve such successful outcomes. 

This project creates the first national training program designed to strengthen the professional competencies of VR counselors in their work with a highly underserved agricultural population. The training 

increases the capacity of VR counselors to provide knowledgeable and comprehensive rehabilitation 

and assistive technology services in achieving successful employment outcomes for rural and largely 

self-employed farmers and farm workers with disabilities. An Advisory Council representing Council 

of State Administrators of Vocational Rehabilitation, VR administrators, field counselors, Technical 

Assistance and Continuing Education, farmers with a disability, Easter Seals Wisconsin, AgrAbility of 

Wisconsin, the Wisconsin Department of Vocational Rehabilitation, and the University of WisconsinExtension assists in designing, reviewing, and refining the training materials developed by this project. 

Project results are reviewed and evaluated using surveys following the training. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Field Initiated Projects (FIPs) 

Wisconsin 

Access Mainstreet: Universal Design Information Tool (UD-IT) 

University of Wisconsin–Milwaukee 

Rehabilitation Research Design and Disability Center

College of Health Sciences 

PO Box 413 

Milwaukee, WI 53201-0413 

smithro@uwm.edu 

Principal Investigator: Roger O. Smith, PhD 414/229-5625 

Public Contact: 414/229-6803 (V); 414/229-5628 (TTY); Fax: 414/229-6843 

Project Number: H133G100211 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Joyce Y. Caldwell 

NIDRR Funding: FY 10 $200,000; FY 11 $200,000; FY 12 $200,000

Abstract: The project develops and tests a software package entitled Access Mainstreet: UD-IT (Access 

Ratings for Buildings (AR-B)) for handheld computers and web interface that: (1) scores and quantifies building accessibility, including ADA-ABA code, (2) details important aspects of accessibility as 

personalized reports that match a person’s impairments to predict problems, and (3) provides access to 

this information anytime and from anywhere. The development and evaluation of the Access Mainstreet: 

UD-IT includes five research activities: (1) developing a data collection taxonomy organized by functional components of buildings; (2) substantial testing by people with disabilities, accessibility experts, 

and building inspectors; (3) collecting sample and demonstration data in City of Milwaukee buildings, 

on UW-System campuses, and in local restaurants; (4) creating a web-based database for centralizing 

report access; and (5) evaluating the effectiveness of the system with psychometric studies including a 

pilot consequential validity study to examine impact. The initial data collection platform is created as an 

accessible mobile smart phone application. Building scores are stored in a central interactive database 

or “cloud” so that individual users do not have to worry about where the data is stored, but can obtain 

free reports from anywhere the Internet is available. Access Mainstreet: UD-IT reports are retrievable 

via both a traditional web interface and a mobile application. Both the traditional interface and mobile 

application platforms offer summaries, and detailed and personalized information formats with an added 

feature of finding facilities in the user’s immediate area on the mobile platform. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Field Initiated Projects (FIPs) 

Wisconsin 

Development of a Passive Prosthetic Ankle with Energy Return that Matches 

that of a Natural Ankle 

Marquette University 

PO Box 1881 

Milwaukee, WI 53201-1881 

joseph.schimmels@marquette.edu 

Principal Investigator: Joseph M. Schimmels, PhD 

Public Contact: 414/288-3623; Fax: 414/288-7790 

Project Number: H133G120256 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 12 $199,862; FY 13 $199,733; FY 14 $199,920

Abstract: The goal of this project is to develop an inexpensive ankle prosthesis that behaves the same as 

a natural ankle. Current commercially available prostheses (e.g., SACH, ESAR feet) allow the amputee 

to walk, but with significant limitations. The primary functions of a natural ankle during walking are: (1) 

the absorption of ground reaction forces, and (2) the generation of forces to propel the body forward. Existing devices absorb ground reaction forces, but do not generate sufficient or appropriately timed forces 

to propel the body forward during push-off. This project develops a purely passive prosthetic ankle, 

which is low in cost and light in weight, with active behavior that allows the amputee to walk with nearnormal gait. The device uses a network of springs in a multi-degree-of-freedom mechanism to provide 

the active and nonlinear behavior normally provided by a natural ankle. It does this without using sensors or actuators. The force generated along the leg during walking is converted into ankle torque used 

to propel the body forward during push-off. As a result, the need for a relatively large motor to generate 

push-off torque is eliminated. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase I 

California 

A Music-Based Rehabilitation Device for Training and Assessing Hand 

Flint Rehabilitation Devices, LLC 

7606 Palo Verde Road 

Irvine, CA 92617 

flintrehabilitation@gmail.com 

www.flintrehabilitation.com 

Principal Investigator: Nizan Friedman 

Public Contact: 203/560-8832; Fax: 949/419-1394 

Project Number: H133S120037 

Start Date: October 01, 2012 

Length: 6 months 

NIDRR Officer: Joyce Y. Caldwell 

NIDRR Funding: FY 12 $75,000

Abstract: This project develops a music-based therapeutic device, MusicGlove, for at-home rehabilitation and assessment of hand function in individuals with hand-related disabilities as the result of stroke. 

Inspired by the popular video game, Guitar Hero, MusicGlove motivates individuals to practice functional gripping movements to play a custom computer game thereby inducing significant improvements 

in hand function. This project performs a usability study of the MusicGlove prototype and refines the 

design based on user feedback. Additionally, the project conducts a pilot study of at-home use of the 

device, comparing its performance to conventional at-home self-supervised therapy. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase I 

California 

Resonating Arm Exerciser: Affordable Active Assistance for Arm Rehabilitation 

Flint Rehabilitation Devices, LLC 

7606 Palo Verde Road 

Irvine, CA 92617 

flintrehabilitation@gmail.com 

www.flintrehabilitation.com 

Principal Investigator: Daniel Zondervan, PhD 562/716-7277 

Public Contact: 562/716-7277

Project Number: H133S120032 

Start Date: October 01, 2012 

Length: 6 months 

NIDRR Officer: Vanessa Tesoriero 

NIDRR Funding: FY 12 $75,000

Abstract: This project establishes the feasibility and potential for commercialization of an arm rehabilitation device, Resonating Arm Exerciser (RAE), appropriate for use by individuals with severe physical 

disabilities, which is safe to use, and provides a therapeutic benefit without the supervision of a rehabilitation therapist while remaining affordable. The RAE device temporarily converts a wheelchair into 

a rocking chair allowing the user to exercise the arm by pushing on a spring lever attached to the push 

rim of the wheelchair. Project objectives include: (1) developing a prototype of RAE that incorporates 

an intuitive, simple mechanical interface making exercise readily accessible, at a low cost, and suitable 

for at-home rehabilitation; (2) performing a usability study of the RAE prototype and refining the design 

based on user feedback; and (3) conducting a pilot study of at-home use of the device, comparing its 

performance to conventional at-home self-supervised therapy. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase I 

California 

Accessible People Finder Application for Individuals with Visual Impairments 

Sendero Group, LLC 

1857 Glenmark Way 

Roseville, CA 95747 

mikemay@senderogroup.com 

Principal Investigator: Michael May 508/893-6363 

Public Contact: 888/757-6810; Fax: 888/757-6807 

Project Number: H133S120016 

Start Date: October 01, 2012 

Length: 6 months 

NIDRR Officer: Joseph A. DePhillips 

NIDRR Funding: FY 12 $74,997

Abstract: This Phase I project develops an accessible geosocial networking (AGN) application for the 

iPhone with Voice Over with the goal to connect people with visual disabilities with other people in their 

proximate environment while employing a revolutionary use of the positioning and connectivity technology built into mainstream cell phones. By capitalizing on the ubiquity of mobile phones with GPS, 

cell tower positioning, compass, and Bluetooth technology, the AGN application offers a solution using 

built-in accessibility for both long- and short-range people finding. The result is a program that identifies 

who is in the vicinity of a person with visual disabilities while combining long- and short-range location 

technologies. Project objectives include: (1) evaluating mainstream geosocial networking products for 

accessibility issues and desired features, (2) developing the accessible geosocial networking application 

for iPhone for locating people in short and long range distances, and (3) analyzing and reporting the success of the developed application in real world situations. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase I 

Colorado 

Development and Evaluation of Accessible Voter Education Software for Students and Adults with 

Intellectual Disabilities 

AbleLink Technologies, Inc. 

618 North Nevada Avenue 

Colorado Springs, CO 80903 

steve@ablelinktech.com 

Principal Investigator: Steven E. Stock 

Public Contact: 719/592-0347; Fax: 719/592-0348 

Project Number: H133S120010 

Start Date: October 01, 2012 

Length: 6 months 

NIDRR Officer: Doris Werwie, PhD 

NIDRR Funding: FY 12 $75,000

Abstract: This project develops and tests a multimedia software application to provide an independently 

usable format for improving knowledge of voting and election processes for persons with intellectual 

disabilities. During Phase I, a prototype is developed and evaluated to determine the feasibility of the 

approach for providing an independent, self-paced, self-directed format allowing students with intellectual disabilities to measurably improve knowledge of the voting and electoral process. The software 

is designed to provide easy-to-understand education materials and a simulated voting experience for 

people with intellectual disabilities with the goal of improving the frequency of voting for people within 

the target population.
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase I 

Florida 

Tactile Awareness Prompting (TAP) System 

Engineering Acoustics, Inc. 

406 Live Oaks Boulevard 

Casselberry, FL 32707 

bmort@eaiinfo.com 

Principal Investigator: Bruce J. Mortimer 

Public Contact: 407/645-5444

Project Number: H133S120033 

Start Date: October 01, 2012 

Length: 6 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 12 $74,838.65

Abstract: This project develops an ambulatory remote operated Tactile Awareness Prompting (TAP) 

system to be used within educational and clinical environments for students who have social skills 

deficits. Individuals with autism spectrum disorders (ASD) exhibit deficits related to social initiations 

and conversational skills. Children with such disabilities often do not have the necessary social skills to 

meet the minimal behavioral demands and expectations of even less restrictive educational settings, nor 

are they able to initiate and maintain positive social relationships with key social agents within these 

settings. Tactile prompts have been proven to effectively increase social initiations when coupled with 

social skills instruction. TAP extends this paradigm, increasing the effectiveness and complexity of the 

tactile symbology, and addresses clinical verification of the approach. The system is a low cost teaching 

aid for schools, clinics, and parents of children who have autism. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase I 

Florida 

Fluentbuddy Device to Enhance the Sensory and Motor Function of Individuals with Speech 

Communication Disabilities 

AventuSoft LLC 

1560 Sawgrass Corporate Parkway, 4th floor 

Sunrise, FL 33323 

kevin@aventusoft.com 

www.aventusoft.com 

Principal Investigator: Kevin Jones 352/214-3481 

Public Contact: 954/331-4691

Project Number: H133S120026 

Start Date: October 01, 2012 

Length: 6 months 

NIDRR Officer: Vanessa Tesoriero 

NIDRR Funding: FY 12 $75,000

Abstract: This project develops FluentBuddy, a prototype application for iOS and Android platforms 

to assist in the treatment of speech and communication disorders with a focus on the physiological 

and anatomical system (i.e. voice disorders, speech sound disorders, motor speech disorders, and other 

disabilities in children and adults). The project has three goals: (1) enhancing sensory and motor function to support improved functional capacity, (2) enhancing workforce participation, and (3) increasing 

independence of individuals with communication disabilities. FluentBuddy utilizes high performance 

speech processing algorithms on a smartphone combined with the Take Along Clinical Therapy platform 

to deliver autonomous measurement, assessment, and treatment of speech/communication issues in real 

time. The FluentBuddy system provides a new platform for the delivery of clinical therapy allowing 

individuals to assess and identify parameters contributing to a communication issue outside of the clinic 

either at home, on a PC, or in real-world situations via a mobile device; and enables tele-practice for 

speech language pathologists in improving therapy outcomes. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase I 

Massachusetts 

Socket Pressure Monitoring System 

Liberating Technologies, Inc. 

325 Hopping Brook Road, Suite A 

Holliston, MA 01746 

todd.farrell@liberatingtech.com 

www.liberatingtech.com 

Principal Investigator: Todd Farrell, PhD 

Public Contact: 508/893-6363, x14; Fax: 508/893-9966 

Project Number: H133S120006 

Start Date: October 01, 2012 

Length: 6 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 12 $74,857

Abstract: The goal of this Phase 1 project is to identify changes in residual limb volume in amputees 

and to warn the user when these changes may lead to potential problems. One cause of residual limb 

pain in amputees is improper prosthetic socket fit, causing a range of mild to unbearable pressures. Residual limbs can change shape over long timeframes which can change the interface between the socket 

and skin. The volume changes may be due to inactivity, weight gain or loss, medications, vascular conditions, or other medical complications. Additionally, the residual limb may have reduced sensation due 

to neuropathy related to diabetes. This project uses sensors embedded in the socket to monitor pressure 

in transfemoral amputees as residual limb volume change is simulated. Volume change is mimicked by 

testing amputees wearing prosthetic sockets that are slightly larger and smaller than usual, and then measuring the corresponding pressures. Pressure is recorded at two locations in the socket in three different 

simulated conditions: (1) decreased limb volume, (2) reference limb volume, and (3) increased limb volume. The two locations are at the distal end of the residual limb and at the ischium. From this data, the 

percent change in pressure from the reference pressure is calculated for the increased limb volume and 

the decreased limb volume conditions. This data is used to determine pressure thresholds which, when 

exceeded, can be used to alert the user that they have a compromised fit. Users can then intervene before 

the limb’s skin is damaged, thus increasing their ability to use their prosthesis, improving their quality of 

life, and reducing healthcare costs. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase I 

Massachusetts 

The Intelligent Brace: A Compliance Monitoring System for Scoliosis 

Liberating Technologies, Inc. 

325 Hopping Brook Road, Suite A 

Holliston, MA 01746 

jen.johansson@liberatingtech.com 

www.liberatingtech.com 

Principal Investigator: Jennifer Johansson 

Public Contact: 508/893-6363, x15; Fax: 508/893-9966 

Project Number: H133S120013 

Start Date: October 01, 2012 

Length: 6 months 

NIDRR Officer: Vanessa Tesoriero 

NIDRR Funding: FY 12 $74,798

Abstract: The goal of this project is to provide real-time monitoring and data logging to help both the 

patient and clinician determine if and when a scoliosis brace is being worn effectively. Despite widespread use of bracing for treatment of scoliosis, its efficacy remains unproven. Studies have indicated 

that user compliance is a large factor in the efficacy of scoliosis brace treatment. Two factors comprise 

wear compliance: (1) the quantity of wear (i.e. does the actual wear time meet the prescribed wear 

time?), and (2) the quality of wear (i.e. is the fit as tight as prescribed?). Without both of these criteria 

being met, the effectiveness of the brace treatment is compromised. The Intelligent Brace for Scoliosis utilizes advanced Micro-Electro-Mechanical Systems (MEMS) technology to measure the pressure 

at clinically important sites within the brace to determine both the quality and quantity of fit. With the 

Intelligent Brace, the patient receives immediate feedback if the brace is improperly adjusted, allowing 

them to obtain an optimal fit and maximum benefit from the brace. The daily wear time at the prescribed 

fit is logged and available to the clinician, enabling them to ensure that the orthotic prescription is being 

followed and intervene when necessary. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase I 

Minnesota 

Brain Computer Interface to Enable Improved Communication Access 

Koronis Biomedical Technologies Corporation 

6901 East Fish Lake Road, Suite 190 

Maple Grove, MN 55369 

triehle@koronisbiotech.com 

Principal Investigator: Timothy Riehle 

Public Contact: 763/515-5355; Fax: 763/463-9000 

Project Number: H133S120039 

Start Date: October 01, 2012 

Length: 6 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 12 $75,000

Abstract: This project develops a novel augmentative and alternative communications (AAC) device 

enabling individuals with severe motor disorders to communicate with a computer via signals emanating 

directly from their brain. The AAC prototype includes an email client that enables an individual to compose and send email without the use of residual motor control, using only a low-cost headset detecting 

brain activity at the scalp. Feasibility of the prototype system is assessed by both expert evaluation and 

by user feedback. Such a brain computer interface provides a low-cost alternative to current solutions 

for individuals with residual volitional motor control, and addresses an unmet need for individuals with 

more profound motor control disabilities. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase I 

Minnesota 

Enhancing Conversation Intelligibility for Hearing Aid Users in Noisy Environments 

Advanced Medical Electronics Corporation 

6901 East Fish Lake Road, Suite 190 

Maple Grove, MN 55369 

t.henderickson@ame-corp.com 

www.ame-corp.com 

Principal Investigator: Paul Gibson 763/515-5360 

Public Contact: Tom Hendrickson 763/515-5353; Fax: 763/463-4817 

Project Number: H133S120017 

Start Date: October 01, 2012 

Length: 6 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 12 $75,000

Abstract: This project creates an easy to use and unobtrusive hearing aid accessory that solves a very 

common problem for hearing aid users: understanding speech in noisy environments. A common problem amongst hearing aid users is trouble understanding speech while listening to a conversation in 

environments with competing speech babble noise and other noises such as restaurant conversations, 

social gatherings, and conversations in busy workplaces or schools. The prototype accessory enhances 

conversation intelligibility with a directional microphone array that wirelessly transmits audio to the 

user’s hearing aids. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase I 

Minnesota 

Blind Orientation and Mobility Training using Simulated Environment Audio 

Innovative Design Labs, Inc. 

95 7th Avenue Northeast 

Minneapolis, MN 55413 

jcondon@innovativedesignlabs.com 

innovativedesignlabs.com 

Principal Investigator: John Condon 612/251-6560 

Public Contact: 612/567-8554; Fax: 763/463-4817 

Project Number: H133S120034 

Start Date: October 01, 2012 

Length: 6 months 

NIDRR Officer: Joseph A. DePhillips 

NIDRR Funding: FY 12 $75,000

Abstract: This project develops a Virtual Reality Audio Simulator to enable the development of orientation and navigation skills for individuals who are blind. The simulator allows young adults undergoing 

orientation and mobility training to explore a virtual model of a realistic 3-D environment via auditory 

feedback. To create a fully immersive and interactive environment, the user wears headphones with 

head-orientation tracking sensors. As the user moves their head, the auditory feedback adjusts in real 

time. The virtual space offers a fun, yet challenging platform to gain spatial skills and develop cognitive 

mapping techniques. Virtual reality simulators and audio games offer new tools for those with visual 

impairments to acquire spatial knowledge. In addition to facilitating learning of basic spatial skills, the 

virtual simulator allows off-line learning of unfamiliar spaces and the simulation of rehearsal of routes 

based on maps and building layouts available online. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase I 

North Carolina 

Pocket Potty Program - Toilet Training for Children with Developmental Disabilities 

The Sandbox Learning Company 

PO Box 12358 

Charlotte, NC 28220 

Principal Investigator: Amy Truong 

Public Contact: 800/704-7815; Fax: 877/562-2923 

Project Number: H133S120002 

Start Date: October 01, 2012 

Length: 6 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 12 $74,730

Abstract: This Phase I project develops and evaluates a mobile application for teaching elementary and 

middle school aged children with intellectual and developmental disabilities toilet training skills. A team 

of educational experts, technology experts, and parent of a child with autism collaborate on the project 

to ensure the mobile application has the greatest benefit. Specific goals include: (1) developing a fully 

functioning mobile application with visuals, media, and touchable interface; and (2) verifying through a 

single subject design the mobile application teaches toilet training to three children with developmental 

disabilities ages 6 through 15. Additionally, this study contributes to disabilities research on toilet training and the use of mobile devices for instruction. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase I 

Pennsylvania 

Feasibility Evaluation of a Forward Facing Wheelchair Passenger Safety Station for Use in Large 

Accessible Transit Vehicles

LINC Design LLC 

139 Shannon Heights Drive 

Verona, PA 15147 

linda@linc-design.com 

Principal Investigator: Linda van Roosmalen, PhD 

Public Contact: 412/401-8194

Project Number: H133S120005 

Start Date: October 01, 2012 

Length: 6 months 

NIDRR Officer: William V. Schutz, PhD, MSW, MPH 

NIDRR Funding: FY 12 $74,950

Abstract: This Phase 1 project enhances safety and independence for wheelchair and scooter passengers 

riding in fixed route transit and increases quality of life and community participation through improved 

accessibility to vehicle safety systems for individuals with mobility disabilities. The goal is to create and 

demonstrate the feasibility of a novel forward facing wheelchair passenger station (FF-WPS) by investigating its safety, ergonomic fit, and general usability. Phase 1 results in new and improved FFWPS 

that meets wheelchair and occupant safety requirements. The key advantages of the FF-WPS concept 

over existing wheelchair securement and occupant restraint systems are: (1) providing enhanced independence to wheelchair and scooter users riding fixed route transit, (2) requiring no involvement by bus 

operators, (3) minimizing wheelchair and scooter tipping into the aisle, and (4) minimizing the risk of 

passenger falls from wheelchairs and scooters during bus travel. Project objectives demonstrating system feasibility in the areas of safety, ergonomics, and usability are achieved through three tasks areas. 

Task 1: Establish the dimensional requirements of the FF-WPS concept to optimize safety, ergonomics, and fit by conducting dynamic (spimulator) testing of occupied wheelchairs and scooters that are 

exposed to vehicle braking, turning, and accelerating-type conditions. Task 2: Design improvements to 

meet (dynamic) safety, ergonomic, and user requirements. Task 3: Create and test an improved FF-WPS 

prototype with optimized safety features, (ergonomic) dimensions and features that enhance usability by 

wheelchair and scooter users. The enhanced features of the FF-WPS prototype allow independent use of 

the transportation system by all passengers. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase II 

California 

Accessible Web Automation for People With Vision Impairments 

Charmtech Labs, LLC 

21701 Alcazar Avenue 

Cupertino, CA 95014-5929 

borodin@charmtechlabs.com 

charmtechlabs.com 

Principal Investigator: Yevgen Borodin 

Public Contact: 516/313-7356

Project Number: H133S120067 

Start Date: October 01, 2012 

Length: 24 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 12 $125,000; FY 13 $125,000

Abstract: This project builds upon previous research to develop and deploy the Assistant, an enabling 

technology for accessible web automation for people with visual disabilities. Web automation, as embodied in the Assistant, automates many of the repetitive low-level actions such as form filling and activating controls (such as clicking on buttons and links) that one has to do in typical browsing tasks such 

as online shopping, banking, course registration, bill payments, reservations, etc. While these tasks are 

easy for sighted people, they pose considerable difficulties for people with visual disabilities, especially 

those who are blind. The Assistant dramatically improves the speed and efficiency with which individuals who are blind or have low vision can do the aforementioned online tasks. The Assistant is driven by 

a predictive model coupled to an intuitive user interface. A unique feature of the Assistant model is its 

ability to automatically learn from the history of browsing actions. The Assistant utilizes this model to 

predict and automate future browsing actions. The interface suggests appropriate browsing actions and 

enables users either to follow the suggestions or bypass them and browse normally. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase II 

California 

Ubiquitous Web Access for People with Visual Impairments 

Charmtech Labs, LLC 

21701 Alcazar Avenue 

Cupertino, CA 95014-5929 

borodin@charmtechlabs.com 

charmtechlabs.com 

Principal Investigator: Yevgen Borodin 

Public Contact: 516/313-7356

Project Number: H133S120055 

Start Date: October 01, 2012 

Length: 24 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 12 $125,000; FY 13 $125,000

Abstract: This Phase II project builds on the results of previous research to develop a fully functional 

continuous speech-to-sign language translation application, Mobile Communications App (MCA), which 

integrates continuous speech recognition software with natural language processing and includes an extensive lexicon of over 18,000 American Sign Language (ASL) signs. The MCA takes English speech or 

text as input and translates this to animated ASL. Previous evaluations demonstrated that: (1) the application is helpful for Deaf and hard-of-hearing students in the classroom, informal learning, and everyday 

life situations; (2) ASL learners found the application helpful as a dictionary and translator; (3) many 

users preferred a larger device such as an iPad or Android tablet; and (4) speech recognition at times fell 

short of expectations. Based on these results this project includes versions of the Mobile Communications App for tablet computers and as a Web-page plug-in, in addition to the handheld smartphones and 

MP3 players used for Phase I. Moreover, the latest, substantially upgraded speech recognition software 

from Google is combined with improved software for resolving the meaning of multi-sense English 

words. Finally, this project conducts a pilot test using the latest Android tablets and Android 4.0 speech 

recognition software and evaluates the completed MCA on several devices as well as with various age 

groups and environmental settings. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase II 

California 

Development of a Robust Sensory Feedback System for Persons with Lower-Limb Sensory Deficits 

Farus, LLC 

2630 Bayshore Parkway 

Mountain View, CA 94043 

mculjat@farusllc.com 

Principal Investigator: Martin Culjat, PhD 

Public Contact: 310/869-5504

Project Number: H133S110053 

Start Date: October 01, 2011 

Length: 24 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 11 $278,002; FY 12 $221,997

Abstract: This project develops a system to provide auxiliary sensory feedback in the lower limbs 

of amputees and enhance sensory function for individuals with disabilities through functional capacity and thereby improve their mobility and quality of life. The Farus sensory feedback system detects 

force loads at the base of the foot or prosthesis and translates this force, via pneumatic control system, 

to pressures on the upper thigh using tactile balloon actuators. By providing tactile stimuli on the skin 

of the upper leg, the system uses a novel information feedback pathway. During Phase I of this project, 

Farus built on the foundation of the prior research effort by designing a sensory feedback system that is 

practical for activities of daily living. During Phase II this project finalizes the system design, fabricates 

multiple systems for clinical use, and examines system efficacy through biomechanical clinical trials. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase II 

Colorado 

Visual Impact Phase II: Using Cloud-Based Technology to Support Activities of Daily Living and 

Other Learning Needs to Facilitate Independence for Individuals with Intellectual Disabilities 

AbleLink Technologies, Inc. 

618 North Nevada Avenue 

Colorado Springs, CO 80903 

dan@ablelinktech.com 

Principal Investigator: Daniel K. Davies 

Public Contact: 719/592-0347; Fax: 719/592-0348 

Project Number: H133S120062 

Start Date: October 01, 2012 

Length: 24 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 12 $125,000; FY 13 $125,000

Abstract: This project develops a cloud-based system for managing and delivering “on demand” activity prompts to individuals with intellectual disabilities along with a comprehensive, automated reporting system to enable reliable remote notifications to facilitate monitoring of task compliance. Pictures, 

audio, and video prompts can be delivered anywhere via the cloud to a Visual Impact cognitively accessible prompting app running on mobile devices including the iPhone, iPad, and Android smart phones/

tablets. This enables step-by-step task prompting to be accessed independently at the places and times 

where it is needed. Phase II involves the continued development and evaluation of a comprehensive 

Visual Impact system, resulting in a tool that allows parents, teachers, and other caregivers to develop, 

manage, and share multimedia instructional training tasks to users in remote locations on-demand. This 

project also further develops and evaluates notification features to allow staff to remotely monitor task 

compliance and take corrective actions as needed. This study continues research on the independent usability of the system, to help validate the efficacy of the system for increasing independent and accurate 

task performance by students and adults with intellectual and other cognitive disabilities, and to evaluate 

the benefits and cost efficiencies of remote monitoring of task compliance. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase II 

Florida 

Mobile Communication App for Deaf and Hard of Hearing 

Vcom3D, Inc. 

3452 Lake Lynda Drive, Suite 260 

Orlando, FL 32817 

jasonh@vcom3d.com; eds@vcom3d.com

www.vcom3d.com 

Principal Investigator: Jason Hurdich 

Public Contact: 407/737-7310; Fax: 407/737-6821 

Project Number: H133S120057 

Start Date: October 01, 2012 

Length: 24 months 

NIDRR Officer: Vanessa Tesoriero 

NIDRR Funding: FY 12 $124,938; FY 13 $124,938

Abstract: This product develops and evaluates a proof-of-concept, mobile speech-to-sign translator 

that integrates continuous speech recognition software with natural language processing and Vcom3D’s 

Signing Avatar animated American Sign Language technology. This speech-to-sign the application is 

designed to run on iPhone/iPod or Android smartphones, providing Deaf and hard of hearing (D/HH) 

learners the independence they need to benefit from opportunity-based learning in face-to-face interactions and where spoken information enhances the experience. Vcom3D has developed and distributed 

Signing Avatar software to assist D/HH children in school environments as well as software that helps 

hearing persons to learn to sign. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase II 

Florida 

Mobile Signing Math Dictionary with Mouth Morphemes 

Vcom3D, Inc. 

3452 Lake Lynda Drive, Suite 260 

Orlando, FL 32817 

jasonh@vcom3d.com; eds@vcom3d.com

www.vcom3d.com 

Principal Investigator: Jason Hurdich 

Public Contact: 407/737-7310; Fax: 407/737-6821 

Project Number: H133S120066 

Start Date: October 01, 2012 

Length: 24 months 

NIDRR Officer: Vanessa Tesoriero 

NIDRR Funding: FY 12 $124,925; FY 13 $124,924

Abstract: This project builds upon previous research and develops a comprehensive model of a mobile 

signing math dictionaries based on mouth movements (mouth morphemes) used in ASL and speech in 

addition to software for students who are Deaf and hard of hearing. Deaf and hard-of-hearing (Deaf/

HH) persons rely heavily on facial movements for communication, whether in American Sign Language 

(ASL), Signed English (SE), or Spoken English. In ASL, signers add “mouth morphemes,” similar to 

speech movements, to signs to distinguish concepts that use the same manual sign. Hard-of-hearing 

persons who use spoken communication read mouth shapes to distinguish similar sounds. The effectiveness of this system is evaluated using the mobile versions of the Signing Math Pictionary (SMP), which 

provides ASL and SE definitions of math terms for K-3 learners. While the SMP is used in the the first 

application of the technology, Phase II research and tools are broadly applicable to future products using 

animation to promote inclusion of Deaf/HH students. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase II 

Massachusetts 

Cooling System for Multiple Sclerosis Patients 

Aspen Systems, Inc. 

184 Cedar Hill Street 

Marlborough, MA 01752 

tlovell@aspensystems.com 

Principal Investigator: Tom Lovell 

Public Contact: 508/281-5322, ext. 237; Fax: 508/281-5323 

Project Number: H133S100088 

Start Date: October 01, 2010 

Length: 24 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 10 $254,680; FY 11 $254,680; FY 12 (No-cost extension through 12/31/2012)

Abstract: This project develops a small mobile personal cooling system that can be worn conveniently 

by individuals with heat-related disabilities. The successful development of this mobile technology: (1) 

supports access, promotes integration, and facilitates the independence of individuals with disabilities in 

the workplace and educational settings, and during recreational activities; (2) provides increased freedom and independence not only to individuals with multiple sclerosis but also to other disability populations; and (3) has further applicability for workers wearing protective equipment and/or in warm work 

environments, including workers in commercial and industrial settings, first respondent mission arenas, 

law enforcement, and the military. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase II 

Michigan 

Virtual Environment for Social Information Processing (VESIP) Phase II 

Soar Technology, Inc. 

3600 Green Court, Suite 600 

Ann Arbor, MI 48105 

info@soartech.com 

www.soartech.com 

Principal Investigator: Jacob Crossman 734/887-7613 

Public Contact: Mike van Lent, PhD 734/327-8000; Fax: 734/913-8537 

Project Number: H133S110048 

Start Date: October 01, 2011 

Length: 24 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 11 $335,758; FY 12 $163,841

Abstract: This project builds upon on previous work on a theory-based tool that assesses and trains 

children with autism spectrum disorders social information processing (SIP) skills. This system, the virtual environment for social information processing (VESIP), is a significant improvement over existing 

measures of social skill in several ways: (1) its standardized, computer-delivered form reduces training 

requirements and scoring time and increases comparability across populations; (2) its theory-based assessment is designed to pinpoint specific deficits in the SIP process for later individualized intervention; 

and (3) its immersive, easily-customizable, game-like interface is engaging, leading to greater ecological 

validity and a more accurate assessment of real-world skills. 
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Small Business Innovation Research (SBIR), Phase II 

Minnesota 

Improved Hearing Aid Connection to Public Induction Loops 

Koronis Biomedical Technologies Corporation 

6901 East Fish Lake Road, Suite 190 

Maple Grove, MN 55369 

plichter@koronisbiotech.com 

Principal Investigator: Timothy Reihle 763/515-5355 

Public Contact: 612/730-1091; Fax: 763/463-9000 

Project Number: H133S110050 

Start Date: October 01, 2011 

Length: 24 months 

NIDRR Officer: Vanessa Tesoriero 

NIDRR Funding: FY 11 $250,000; FY 12 $250,000

Abstract: This project designs, builds, and evaluates a pre-production prototype of a hearing aid using 

a three-axis telecoil assembly. Telecoils in hearing aids serve a dual purpose: (1) to enhance telephone 

conversation, and (2) enable hearing aids to serve as a wireless interface for public audio broadcasts. 

When broadcasting audio signals, the signal is transmitted to the telecoil sensor (a magnetic field sensor located in the hearing aid) via magnetic energy from an induction wire loop located near the listener. 

This induction loop can be a small assembly located in the handset of the telephone or a large wire loop 

within a public venue like a theatre. The design utilizes digital signal processing algorithms to process 

the magnetic transmissions from the induction loops. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase II 

Minnesota 

Indoor Route Following Tool for the Blind 

Koronis Biomedical Technologies Corporation 

6901 East Fish Lake Road, Suite 190 

Maple Grove, MN 55369 

plichter@koronisbiotech.com 

Principal Investigator: Shane Anderson 763/515-5355 

Public Contact: 612/730-1091; Fax: 763/463-9000 

Project Number: H133S110049 

Start Date: October 01, 2011 

Length: 24 months 

NIDRR Officer: Vanessa Tesoriero 

NIDRR Funding: FY 11 $250,000; FY 12 $250,000

Abstract: This project develops an indoor route following system using a novel indoor location technology. This technology allows a user who is blind to follow a path inside a building. Using this device, a 

visitor to a shopping mall can enter the building and follow a pre-recorded path to a specific store. The 

user can make his or her own path with the aid of a sighted person or download prerecorded paths that 

others have created for building interiors. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase II 

Oklahoma 

Haptic Feedback Improvements for Prostheses 

OrthoCare Innovations, LLC 

800 Research Parkway, Suite 310 

Oklahoma City, OK 73104 

Principal Investigator: Pravin Chaubey 

Public Contact: 405/271-2466; Fax: 405/271-2467 

Project Number: H133S100094 

Start Date: October 01, 2010 

Length: 24 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 10 $205,591; FY 11 $205,591; FY 12 (No-cost extension through 09/30/2013)

Abstract: This project optimizes haptic system design parameters and more thoroughly evaluates the 

impact of a vibratory haptic system for prosthetics. Objectives include: (1) building a hardware and software test bed for non-invasive voluntary control of a prosthetic hand with vibratory haptic feedback, (2) 

optimizing the tactor application, (3) assessing the effectiveness of tactor vibratory feedback on cognitive loading interpretations, and (4) assessing perceptions of subjects regarding the actual use of haptic 

feedback. Specifically, Objective One involves the construction of a controlled box. Fingertip sensors on 

the thumb and index finger of a myoelectric arm convey pressure data to a microprocessor. Using a mapping algorithm, the processor generates a corresponding waveform that is sent to feedback devices (tactors) placed on the skin of the upper arm. Objectives Two through Four test the vibratory feedback on 

seven below-elbow amputees. Objective Two determines the best tactor location, vibration waveform, 

and time duration until deterioration in skin sensitivity occurs by measuring how well the subjects can 

sense a change in vibration frequency (as identified in previous work as a spectrum of interest). This information assists in determining when a resting period from vibrotactile stimulation is required to avoid 

over-stimulation of the skin. Objective Three tests the ability of the vibrotactile feedback to provide 

information on grasping force with the myoelectric hand. The myoelectric hand is controlled by the contraction intensity of the wrist extensor and flexor muscles as detected by electromyography electrodes. 

Trials use the myoelectric hand to grasp a plush ball at forty percent, sixty percent, and eighty percent of 

the subject’s maximum grasping force. Trials using vibrotactile feedback, visual feedback, and no feedback are compared. Objective Four requires the subjects to rate the system in terms of level of comfort, 

accuracy, user friendliness, level of discomfort, and overall usefulness in grasping activities. 
NIDRR Program Directory FY 2012 - Technology for Access and Function

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Small Business Innovation Research (SBIR), Phase II 

Utah 

New Electro-Hydraulic Foot Prosthesis 

Motion Control, Inc. 

115 North Wright Brothers Drive 

Salt Lake City, UT 84116 

harold@utaharm.com 

Principal Investigator: Harold H. Sears, PhD 

Public Contact: 801/326-3434; Fax: 801/978-0848 

Project Number: H133S100080 

Start Date: October 01, 2010 

Length: 24 months 

NIDRR Officer: Joyce Y. Caldwell 

NIDRR Funding: FY 10 $238,712; FY 11 $238,712; FY 12 (No-cost extension through 9/30/2013)

Abstract: This project develops an electronic-controlled version of the advanced hydraulic foot/ankle 

(MCI Foot) demonstrating the feasibility of the automatic adjustment of resistance throughout the range 

of motion. The advanced MCI Foot, especially the automatic-controlled version, contributes to the function of the prosthesis wearer, resulting in advanced and more natural walking benefits. The project objectives include: (1) implementation of electric servo-valves into the existing foot-ankle design. Manual 

valves have been developed at present, and in preliminary testing, shown to be successful at setting the 

foot wearer’s preference for dorsi-flexion and plantar flexion; (2) development of sensor for ankle position, inclination, temperature, and load for integration into the ankle electronic Controller. The sensors 

utilize a rugged design, for long-term reliable usage in the foot, and small size to fit within the anatomical shape of the foot; and (3) implementation of an algorithm for ankle control by microprocessor. 

The automatic control of ankle resistance depends upon the variable of position, inclination, and load, 

indicating the point in the gait cycle in which the walker’s step is taken. The temperature is automatically compensated for as the hydraulic fluid warms and changes viscosity. Success in the function of the 

auto-controller is evaluated in-house, in the Foot Testing Center. 
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Contents

Rehabilitation Research and Training Centers (RRTCs) ......................................................................3

Disability and Rehabilitation Research Projects .................................................................................13

Field Initiated Projects (FIPs) .............................................................................................................17

Small Business Innovation Research (SBIR), Phase II ......................................................................43

Participation and Community Living 

NIDRR’s focus on participation follows the stated purpose of independent living 

programs to promote a philosophy of independent living, including a philosophy 

of consumer control, peer support, self-help, self-determination, equal access, and 

individual and system advocacy, in order to maximize the leadership, empowerment, 

independence, and productivity of individuals with disabilities, and the integration and 

full inclusion of individuals with disabilities into the mainstream of American society. 

NIDRR sponsors research to improve knowledge of individual- and societal-level factors 

that may serve as barriers to, or facilitators of, participation among all people with 

disabilities.

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Rehabilitation Research and Training Centers (RRTCs) 

California 

Personal Assistance Services (PAS) in the 21st Century 

University of California at San Francisco 

3333 California Street, Suite 455 

San Francisco, CA 94118-0612 

melinda.neri@ucsf.edu 

www.pascenter.org 

Principal Investigator: Charlene Harrington, PhD, RN; H. Stephen Kaye, PhD; Mitch LaPlante, PhD; 

Robert Newcomer, PhD; 415/476-4030 

Public Contact: Mel Neri, Center Coordinator 866/727-9577; 415/502-7190 (V); 415/502-5216 (TTY); 

Fax: 415/476-6552 

Project Number: H133B080002 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 08 $850,000; FY 09 $850,000; FY 10 $850,000; FY 11 $850,000; FY 12 

$850,000

Abstract: This rehabilitation research and training center focuses on: (1) improving access to personal 

assistance services (PAS) by individuals with disabilities; (2) improving the workforce to support individuals with disabilities; and (3) understanding the complexities of the economics of PAS. This project: 

(1) analyzes trends in the met and unmet needs for PAS in the United States, and the changing demographics of the PAS population, and makes national and state projects of need; (2) investigates the relationship between need and economic status for working age and older groups; (3) tracks and analyzes 

trends in PAS participants, services, and expenditures, and federal and state Olmstead-related initiatives 

to expand PAS; (4) identifies state PAS policies and barriers to meeting the need for PAS; and (5) analyzes state PAS intervention strategies and factors which impact the success of expanding PAS services. 

Additionally, this project develops health promotion and educational tools, supports, and interventions 

to improve the health of caregivers and PAS users; addresses the needs of children and their family 

caregivers through focused research on the impact of family caregiving on employment; and examines 

the needs and supports for aging minority caregivers and the amount and type of caregiving provided 

by family or friends. Moreover, this project gathers and makes available existing strategies, and develops a model approach for emergency PAS. While monitoring and analyzing trends and demographics 

of paid PAS workforce, this project identifies and tracks state strategies to improve PAS worker wages 

and benefits; monitors state trends in the number and diversity of PAS workers, their compensation, 

turnover, and vacancies; and evaluates the effectiveness of state efforts. This project also identifies and 

makes available comprehensive information about developments in state training requirements for PAS 

workers and evaluation of these programs; collects and analyzes primary data on workplace PAS, AT, 

and employment supports; and analyzes barriers to employment among Medicaid PAS beneficiaries and 

whether AT lessens the need for PAS. Finally, the RRTC analyzes the role of tax laws that affect reimbursement for PAS. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Rehabilitation Research and Training Centers (RRTCs) 

Illinois 

Rehabilitation Research and Training Center on Aging with Developmental Disabilities: Lifespan 

Health and Function 

University of Illinois at Chicago 

Department of Disability and Human Development (MC 626)

College of Applied Health Sciences 

1640 West Roosevelt Road 

Chicago, IL 60608-6904 

rrtcadd@uic.edu 

www.rrtcadd.org 

Principal Investigator: Tamar Heller, PhD 312/413-1647 

Public Contact: Alan Factor, Associate Director 800/996-8845 (V); 312/413-1520 (V); 312/413-0453 

(TTY); Fax: 312/996-6942 

Project Number: H133B080009 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 08 $849,996; FY 09 $849,997; FY 10 $849,997; FY 11 $849,992; FY 12 

$849,992

Other Funding: FY 12 $199,999 (NIDRR Supplemental Funding)

Abstract: This project enhances the health, function, and full community participation of adults with 

intellectual and developmental disabilities (I/DD) across the life span by bolstering family caregiving capacity through a coordinated set of research, training in evidence-based practices, technical 

assistance,and dissemination activities. Research goals include: (1) improve the health and function of 

adults with I/DD across the lifespan, (2) enhance consumer-directed home and community-based supports, (3) reduce environmental barriers to healthy homes and community participation, and (4) improve 

instruments and measures to assess intervention outcomes. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Rehabilitation Research and Training Centers (RRTCs) 

Kansas 

Rehabilitation Research and Training Center on Measurement and Interdependence in 

Community Living (RRTC/MICL) 

The University of Kansas 

1000 Sunnyside Avenue, Room 4089 

Lawrence, KS 66045-7555 

rtcil@ku.edu 

www.rtcil.org/micl 

Principal Investigator: Glen W. White, PhD 785/864-4095 

Public Contact: Pam Wilits 785/864-4095 (V); 785/864-0706 (TTY); Fax: 785/864-5063 

Project Number: H133B060018 

Start Date: October 01, 2006 

Length: 60 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 06 $649,839; FY 07 $649,908; FY 08 $649,686; FY 09 $649,909; FY 10 

$649,636; FY 11 (No-cost extension through 9/30/2012); FY 12 (No-cost extension through 9/30/2013)

Abstract: The goal of this project is to increase the independence and participation of people with disabilities in their communities through the development and implementation of scientifically sound, theoretically driven, and evidence-based interventions. Researchers accomplish this through six core projects. Two research projects, one on community participation and a second on economic utility, involve 

development of theory-driven measurement tools. The remaining four projects include the application of 

these measurement tools as part of their methods and procedures. Two of these projects are interventions 

and two develop model assessments. The first assessment project uses secondary analysis to develop 

and implement a model for assessing the economic utility and health-related outcomes of participants 

enrolled in Home and Community-Based Service waivers. The second assessment project evaluates the 

effects of different independent living advocacy-service models to determine the comparative effectiveness of different models in increasing community participation. The first intervention project examines 

the effectiveness of personal assistance services and enhanced training to increase consumer participation in the community. The second intervention project is a multisite study that examines the effects of 

a consumer-led grassroots approach in identifying and removing barriers to increase community participation. Together, these projects represent a comprehensive, integrated, and robust set of activities that 

recognize that “disability” is an interaction between the characteristics of an individual and his or her 

environment. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Rehabilitation Research and Training Centers (RRTCs) 

Kansas 

Rehabilitation Research and Training Center on Community Living 

The University of Kansas 

1000 Sunnyside Avenue, Room 4089 

Lawrence, KS 66045-7555 

glen@ku.edu 

www.rtcil.org 

Principal Investigator: Glen W. White, PhD 

Public Contact: 785/864-4095 (V/TTY); Fax: 785/864-5063 

Project Number: H133B110006 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 11 $849,810; FY 12 $849,659; FY 13 $849,921; FY 14 $849,941; FY 15 

$849,752

Abstract: The goal of the Rehabilitation Research and Training Center on Community Living (RRTC/

CL) is to increase the continuity of community living and full community participation of people with 

disabilities through the development and implementation of scientifically sound, theoretically driven, 

and evidence-based data analysis and interventions. The RRTC’s 13 core projects represent a comprehensive, integrated, and robust array of activities promoting community participation among people 

with disabilities. These projects recognize “disability” as an interaction between the characteristics of an 

individual and his/her environment. Six research projects conduct secondary data analyses to provide a 

knowledge foundation about how the barriers to and experiences of community living may differ across 

socio-demographic and geographic groups within the diverse population of individuals with disabilities. 

Five intervention projects evaluate the efficacy of programs, policies, and practices to improve services 

and supports that provide community participation opportunities for individuals with disabilities. These 

interventions address consumer participation needs in the areas of housing, health, recreation, and community and civic involvement. Several of these address the services and supports needed to transition 

from institutions, nursing homes, and other health and community institutions to the community and to 

maintain continuity of community living. Project investigators and staff regularly work with consumers 

with disabilities to incorporate their input on individual projects, as they are planned and implemented. 

The Center employs and adds to the latest knowledge translation approaches to disseminate research 

results that target multiple audiences, including advocates, policymakers, and program planners. The 

goal of the dissemination plan is to translate knowledge to allow scientists, policymakers, consumers, 

and consumer advocates in the area of disability and independent living to create and maintain greater 

opportunities for community living and participation of people with disabilities. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Rehabilitation Research and Training Centers (RRTCs) 

Massachusetts 

ENhancing ACTivity and Participation for Persons with Arthritis (ENACT) 

Trustees of Boston University 

Physical Therapy and Athletic Training

College of Health & Rehabilitation Sciences 

881 Commonwealth Avenue 

Boston, MA 02215 

jkeysor@bu.edu 

www.bu.edu/enact 

Principal Investigator: Julie J. Keysor, PhD 

Public Contact: 617/353-2735

Project Number: H133B100003 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 10 $799,983; FY 11 $799,968; FY 12 $799,992; FY 13 $799,988; FY 14 

$799,992

Abstract: This project advances, disseminates, and applies knowledge in rheumatological rehabilitation—an interdisciplinary field that integrates rheumatologic, musculoskeletal, neurological, behavioral, 

and social systems to optimize activity and participation among persons with arthritis. Project objectives 

include: (1) advancing science regarding effective interventions to optimize activity and enhance social, 

community, and work participation among persons with arthritis; (2) developing a team of interdisciplinary rheumatology rehabilitation clinical researchers knowledgeable in disablement, rehabilitation, rheumatology, and clinical research methods; and (3) disseminating knowledge, resources, and programs to 

consumers, providers, and researchers to promote activity and participation among persons with arthritis. 

These project objectives are addressed by a series of nine inter-related project activities: Project 1: “Efficacy of a Modified Vocational Rehabilitation Intervention for Work Disability” is a randomized controlled trial examining work disability outcomes of a structured intervention that poses solutions to work 

barriers identified by persons at risk of work loss; Project 2: “Can Computer-Based Telephone Counseling Improve Long-Term Adherence to Strength Training in Elders with Knee Osteoarthritis?” is a randomized controlled trial of a telecommunications physical activity adherence program for older adults 

with knee osteoarthritis; Project 3: “Community and Home Participation after Total Knee Replacement” 

is an epidemiological and qualitative study examining factors associated with poor participation outcomes post total knee joint replacement; Project 4: In partnership with Massachusetts Chapter of the 

Arthritis Foundation, a series of community consumer forums address knee osteoarthritis for members 

of underrepresented groups in the Greater Boston area; Project 5: A series of inservices and webinars are 

conducted to disseminate knowledge to providers of persons with arthritis; Project 6: A state-of-the-science conference on enhancing activity and participation for persons with arthritis is conducted; Project 

7 is a partnership with the Arthritis Foundation to train new leaders of the Arthritis Foundation Exercise 

Program for future implementation of the program in underrepresented communities; Project 8: Development and evaluation of a new online program to help adults with knee osteoarthritis problem-solve 
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the potential challenges experienced when initiating physical activity programs; and Project 9: Development and evaluation of a new online program providing resources for adults with arthritis optimizing job 

retention. Additionally, this project implements and evaluates a structured mentored training program 

developing a new group of scientists in the field of rheumatological rehabilitation. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Rehabilitation Research and Training Centers (RRTCs) 

Minnesota 

Rehabilitation Research and Training Center for Community Living and Employment for 

Individuals with Intellectual and Developmental Disabilities 

University of Minnesota 

The Institute on Community Integration 

204 Pattee Hall, 150 Pillsbury Drive, SE 

Minneapolis, MN 55455 

lakin001@umn.edu 

rtc.umn.edu 

Principal Investigator: Amy Hewitt, PhD 612/624-6328 

Public Contact: Sheryl Larson, PhD 612/624-6024; Fax: 612/625-6619 

Project Number: H133B080005 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 08 $850,000; FY 09 $850,000; FY 10 $850,000; FY 11 $850,000; FY 12 

$850,000

Abstract: The Rehabilitation Research Training Center for Community Living (RRTC/CL) conducts 

intervention and outcome research to generate and share knowledge about community living, employment, and self-determination. Through compressive study of individual outcomes of a random sample 

of 10,300 adults with intellectual and developmental disabilities (I/DD) from 15 geographically representative states, this project studies intervention programs in self-determination, relationship building, 

employment, direct support professional training, and the first US and largest ever trial of the active support model of organizational and staff support of persons with I/DD. Additionally, this study identifies 

and evaluates existing instrumentation in community living outcome studies. The RRTC/CL conducts 

quantitative intervention, outcome studies, and research synthesis on the state of knowledge and practice 

and case studies of organizations exemplifying transformations and practice needs in order to achieve 

full inclusion. Through training, conferences, and technical assistance this project provides an integrated 

“intramural” training program that develops a “next generation” of skilled disability researchers and 

professionals. This includes the RRTC/CL College of Direct Support, a national, multimedia, interactive, 

Internet-based training program. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Rehabilitation Research and Training Centers (RRTCs) 

Oregon 

Rehabilitation Research and Training Center for Pathways to Positive Futures: Supporting 

Successful Transition for Youth and Young Adults with Serious Mental Health Conditions 

Portland State University 

Regional Research Institute for Human Services 

PO Box 751 

Portland, OR 97207-0751 

flemingd@pdx.edu 

www.pathwaysrtc.pdx.edu 

Principal Investigator: Janet Walker 

Public Contact: Donna Fleming, Center Manager 503/725-8313; Fax: 503/725-4180 

Project Number: H133B090019 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 09 $800,400; FY 10 $800,400; FY 11 $800,400; FY 12 $800,400; FY 13 

$800,400

Abstract: This project incorporates research, targeted training, and dissemination while adhering to a 

single conceptual framework of synthesizing research guided by an intervention approach. This framework focuses on building assets in four areas: (1) self-determination and positive identity, (2) youth- and 

young adult-directed decision making, (3) skills for adult roles, and (4) supportive relationships with 

peers and adults. The eight research projects (R1-R8) employ randomized controlled trial design, focusing on testing the efficacy of an intervention and improving outcomes for transition-age youth and young 

adults with serious mental health conditions. R1: My Career Vision tests an approach to career planning 

and employment for young adults, ages 21 to 25, who are receiving Social Security Insurance or extended special education services. R2: Better Futures tests a comprehensive intervention to assist young 

people in foster care with serious mental health conditions to prepare to participate in post-secondary 

education. R3: Achieve My Plan studies the efficacy of an approach to helping young people lead their 

mental health treatment planning teams, and to build service capacity to support youth engagement. Two 

projects develop and test assessment inventories: R4: Transition Policy Consortium develops an inventory that assesses the level of community support for transition services with a specific emphasis on 

measuring collaboration and continuity of care between the child and adult mental health systems; and 

R5: Finding Our Way furthers the development of a culturally specific self-assessment tool for American Indian/Alaskan Native youth, ages 13 to 19, and the tool is modified to include issues relevant to 

transition. Training, supervision, and coaching materials are produced to improve provider practice. R6: 

eHealth examines the ways youth and young adults use the Internet to find information about mental 

health care, conditions, symptoms, or medications. The R6 project identifies the kinds of information 

that young people look for, tracks their search processes, and assesses how they verify the accuracy of 

the information they find; then uses this information to develop and test an eHealth literacy curriculum. 

R7: Recovery Outcomes analyzes data from the System of Care National Evaluation related to young 

people’s recovery outcomes. R8: Mediators of Stigmatization analyzes data from nationally representative samples of youth and young adults, and uses this information to identify potentially effective antistigmatization strategies. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Rehabilitation Research and Training Centers (RRTCs) 

Pennsylvania 

Rehabilitation Research and Training Center on Participation and Community Living of 

Individuals with Psychiatric Disabilities 

Temple University 

Department of Rehabilitation Sciences 

1700 North Broad Street, Suite 304 

Philadelphia, PA 19122 

mark.salzer@temple.edu 

www.tucollaborative.org 

Principal Investigator: Mark Salzer, PhD 215/204-7879 

Public Contact: Katy Kaplan 215/204-6779; Fax: 215/204-3700 

Project Number: H133B100037 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 10 $850,000; FY 11 $850,000; FY 12 $850,000

Abstract: The research of this center focuses on two core areas: (1) Enhancing the capacity of individuals and systems to maximize participation and community living through the advancement of theory, 

measures, methods, and intervention knowledge, with a focus on Centers for Independent Living, specific (education, parenting, mental health care) and broad participation domains, and efforts to address 

disparities in understudied areas; and (2) increased incorporation of mental health research findings into 

practice and policy through systematic reviews, partnering with multiple stakeholders to advance the use 

of knowledge, and providing training, dissemination, and technical assistance to change behaviors and 

practices of key stakeholders. The goal of this Center is to ensure, in the wake of the Olmstead decision, 

that individuals with psychiatric disabilities not only move from institutional care to more integrated settings but also are free to choose to participate in a wide range of roles in their communities. This Center 

capitalizes upon longstanding collaborations among three Philadelphia-based central partners, experience derived from previous research, and trusting and mutual partnerships with multiple stakeholders. 

These guarantee the project’s ability to conduct research that advances knowledge that meets the needs 

of end-users and effectively translate this knowledge into innovative, next generation policies and practices. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Rehabilitation Research and Training Centers (RRTCs) 

Texas 

Developing Strategies to Foster Community Integration and Participation (CIP) for Individuals 

with Traumatic Brain Injury 

The Institute for Rehabilitation and Research (TIRR) 

Brain Injury Research Center 

2323 South Shepherd, Suite 907 

Houston, TX 77019-7024 

angelle.sander@memorialhermann.org 

Principal Investigator: Angelle M. Sander, PhD 

Public Contact: 713/630-0516; Fax: 713/630-0529 

Project Number: H133B090023 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 09 $849,956; FY 10 $849,968; FY 11 $849,955; FY 12 $849,966; FY 13 

$849,980

Abstract: This rehabilitation research and training center conducts three research projects and five training projects, providing a comprehensive approach to improving participation in all areas of community 

integration for all persons with traumatic brain injury (TBI), including minorities. Research Project 1 

is a randomized controlled trial of a community-based contextualized intervention to improve memory 

and memory-related participation activities. This trial compares the effectiveness of a contextualized 

memory intervention provided in the participant’s home to standard instruction in use of a memory notebook for improving functional memory and community participation. Research Project 2 is a randomized controlled trial of an extended case coordination service to maximize access to and benefit from 

state vocational rehabilitation services. This trial compares employment outcomes for persons receiving a case coordination intervention to those only receiving a referral for state vocational rehabilitation 

services. Research Project 3 develops a comprehensive list of symptoms of TBI and based on this list, 

creates a classification system for persons with TBI utilizing symptoms, and barriers and facilitators for 

community integration. This system deploys an innovative, user-friendly, web-based application. Training and technical assistance activities facilitate the widespread dissemination of educational materials 

on evidence-based strategies for improving function and participation after TBI. Training projects focus 

on increasing capacity for social networking and on providing education to persons with TBI, caregivers, and treating clinicians, in order to maximize community participation. Training is also conducted 

in use of the classification system to assist researchers and clinicians in allocating persons with TBI to 

appropriate treatments. Technical assistance activities are also conducted to improve implementation of 

training activities and to maximize resulting community integration. 
NIDRR Program Directory FY 2012 - Participation and Community Living

4-13

Disability and Rehabilitation Research Projects 

California 

National Center for Parents with Disabilities and Their Families 

Through the Looking Glass 

3075 Adeline Street, Suite 120 

Berkeley, CA 94703 

tlg@lookingglass.org 

www.lookingglass.org 

Principal Investigator: Megan Kirshbaum, PhD; Paul Preston, PhD

Public Contact: 800/644-2666 (toll-free voice) ; 510/848-1112 (V); 510/848-1005 (TTY); Fax: 

510/848-4445 

Project Number: H133A080034 

Start Date: October 01, 2008 

Length: 36 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 08 $500,000; FY 09 $500,000; FY 10 $500,000; FY 11 (No-cost extension 

through 9/30/2012); FY 12 (No-cost extension through 12/31/2013)

Abstract: The National Center for Parents with Disabilities and Their Families targets three national 

populations: parents with diverse disabilities, family members, and service providers and trainees who 

have a particularly critical impact on parents. The Center’s activities target the most critical issues facing 

parents with disabilities and their families: custody and parental evaluations, family roles and personal 

assistance, paratransit, and intervention with parents with cognitive and intellectual disabilities. The 

overall goal of this project is to improve the quality of life among parents with disabilities and their 

families. This goal is met by incorporating the project’s research, development, training, and technical assistance and dissemination activities into four project objectives. The four project objectives are: 

(1) increase the national availability of accessible and disability appropriate resources for parents with 

diverse disabilities and their families; (2) increase knowledge of parenting with a disability among 

diverse parents, family members, and providers; (3) increase informed practice and informed decisions 

regarding parenting with a disability among providers; and (4) increase state and local legislative and 

policy changes to decrease discrimination against parents with disabilities and their children. The Center 

conducts eight separate research and eight new development projects; provides technical assistance to 

at least 8,000 parents and providers; conducts focused trainings to 12,000 diverse parents and providers; 

and nationally disseminates at least 200,000 project materials and products consolidated from Center activities as well as from other NIDRR-funded projects. Center activities are guided by the following basic 

principles: (1) utility to parents, family members, and service providers; (2) social change to improve the 

lives of parents with disabilities and their families; (3) consumer involvement as integral to all activities; 

(4) value of consumer-based knowledge; (5) value of diverse perspectives; (6) use of multiple and accessible formats; and (7) dissemination and utilization as interactive and ongoing processes. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Disability and Rehabilitation Research Projects 

California 

Families with Disabilities Through the Life Cycle: Disability Culture 

Through the Looking Glass 

3075 Adeline Street, Suite 120 

Berkeley, CA 94703 

tlg@lookingglass.org 

www.lookingglass.org 

Principal Investigator: Megan Kirshbaum, PhD; Paul Preston, PhD

Public Contact: 800/644-2666 (toll-free voice) ; 510/848-1112 (V); 510/848-1005 (TTY); Fax: 

510/848-4445 

Project Number: H133A110009 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 11 $500,000; FY 12 $500,000; FY 13 $500,000; FY 14 $500,000; FY 15 

$500,000

Abstract: This project incorporates two inter-related and overarching frameworks for all project activities: (1) to understand and document the life cycle of families with diverse disabilities – from those 

parents with and without disabilities who are at the initial stages of having an infant with a disability, 

through children with disabilities growing up to become parents with disabilities, to adults with disabilities caring for their elderly parents; and (2) to use the perspectives of disability and Deaf communities 

to inform all project activities with an overall goal to increased participation and community living for 

individuals with disabilities and their families. Project goals focus on research, development, training, 

technical assistance, and dissemination activities: (1) increase the national availability of accessible and 

disability-appropriate resources for families with disabilities that incorporate perspectives drawn from 

diverse personal and family disability experiences across the life cycle; (2) increase families’ and providers’ knowledge about families with disabilities across the life cycle; (3) increase informed practice 

and informed decisions regarding families with disabilities across the life cycle; and (4) increase state 

and local legislative and policy changes to decrease discrimination against families with disabilities. 

This project targets four national populations: (1) parents and grandparents with diverse disabilities, (2) 

children with diverse disabilities, (3) members of families in which a parent or child has a disability, and 

(4) service providers and trainees. Over 5 years the DRRP (1) conducts 7 separate research and 18 new 

development projects; (2) provides technical assistance to at least 25,000 parents, family members, and 

providers; (3) conducts focused trainings to 10,000 diverse parents and providers; (4) nationally disseminates at least 200,000 project materials and products consolidated from project activities as well as 

from other NIDRR-funded projects. Project activities are designed to address critical gaps in knowledge 

and resources that impact the daily lives of the families with disabilities. Each of these research, development and training projects target different facets of families with diverse disabilities – from national 

prevalence and demographics to understanding the perspectives of families at different stages of family 

formation to discriminatory or uninformed practice. 
NIDRR Program Directory FY 2012 - Participation and Community Living

4-15

Disability and Rehabilitation Research Projects 

Illinois 

UIC Obesity Research Project on Prevalence, Adaptations, and Knowledge Translation in Youth 

and Young Adults with Disabilities from Diverse Race/Ethnic Backgrounds 

The University of Alabama at Birmingham 

School of Health Professions, SHPB 331 

1720 2nd Avenue South 

Birmingham, AL 35294-3361 

jrimmer@uab.edu 

Principal Investigator: James H. Rimmer, PhD 

Public Contact: 205/975-9010; Fax: 205/975-7787 

Project Number: H133A120102 

Start Date: August 16, 2012 

Length: 36 months 

NIDRR Officer: Margaret Campbell, PhD 

NIDRR Funding: FY 12 $450,145.23; FY 13 $400,000; FY 14 $400,000

Abstract: This project expands upon ongoing research on obesity in youth and young adults with disabilities (formerly funded under DRRP-I) by addressing significant gaps in the literature related to prevalence, risk factors, and consequences of obesity; successful and promising community-based strategies 

for obesity prevention; and knowledge translation issues that limit access to important research findings. 

The target population includes transition-age youth and young adults, ages 15 to 25 years, with physical 

and cognitive disabilities from culturally diverse racial and ethnic backgrounds. Goals and objectives include: (1) identifying obesity prevalence using multiple longitudinal and cross-sectional data sets that include self-report and actual measurement data of height/weight, (2) examining the antecedents and consequences of obesity, (3) establishing methods and criteria for creating guidelines that enhance access 

to evidence-based and community-based obesity prevention strategies and associated programs using a 

national expert panel, and (4) developing and testing an integrative knowledge translation framework for 

rapidly and effectively delivering research findings and recommendations to key stakeholders from national and state-level organizations across the US. The project consists of three integrated research studies and a comprehensive national dissemination plan. Project R1 involves extensive secondary analyses 

of several longitudinal and cross-sectional national and state-level data sets. Project R2 uses a modification of the ADAPTE collaboration framework and national expert panel for establishing a formal set of 

methods and criteria for modifying/adapting evidence-based and community-based obesity prevention 

strategies and the programs associated with them. Project R3 tests a modification of Graham’s Knowledge Translation Model for implementing dissemination of research findings and adaptations using an 

early adopter framework that targets disability and health program directors. Project outcomes include: 

(1) accurate set of obesity prevalence data by disability group and sociodemographic factors, (2) knowledge of the antecedents (i.e., risk factors) and consequences (i.e., secondary conditions) of obesity, (3) 

valid set of methods and criteria for adapting community-based obesity prevention strategies and programs, (4) national guidelines for promoting inclusive obesity-prevention programs across the US in 

current and future programs, and (5) integrative knowledge translation framework that effectively moves 

research findings into the hands of key stakeholders who can effect policy and/or program change. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Disability and Rehabilitation Research Projects 

Oregon 

School Transition & re-Entry Program (STEP): Systematic Hospital-to-School Transition for 

Students with Traumatic Brain Injury 

Western Oregon University 

The Teaching Research Institute 

99 West 10th Avenue, Suite 370 

Eugene, OR 97401 

glanga@wou.edu 

www.tr.wou.edu/STEP 

Principal Investigator: Ann E. Glang, PhD 

Public Contact: 541/346-0594; Fax: 541/346-0599 

Project Number: H133A060075 

Start Date: October 01, 2006 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 06 $300,000; FY 07 $300,000; FY 08 $300,000; FY 09 $300,000; FY 10 

$300,000; FY 11 (No-cost extension through 9/30/2012); FY 12 (No-cost extension through 9/30/2013)

Abstract: Due to the absence of effective procedures for transitioning students from hospital to school, 

many students with traumatic brain injury (TBI) who need specialized services are not identified for special education. This lack of identification can lead to inappropriate services, and perpetuates the lack of 

awareness of TBI among school professionals. This project utilizes a systematic approach to developing, 

testing, and disseminating a comprehensive hospital-school transition intervention, called the School 

Transition & re-Entry Program (STEP). Researchers evaluate the effectiveness of the STEP intervention, which includes referral to a school-based transition specialist, long-term tracking of student performance, and parent advocacy training in a three-phase research plan. Following the Phase I development 

period involving focus groups and interviews with parents, hospital staff, and school personnel, and a 

year-long pilot test (Phase II), the project evaluates the effectiveness of the transition intervention in a 

multi-site randomized control trial (Phase III). 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Arizona 

Deaf Interpreter Certification Project: Certifying Intermediary Interpreters Who Are Deaf to 

Ensure Effective Communication for the Deaf, Hard of Hearing, and Deaf-Blind 

University of Arizona 

National Center for Interpretation 

Geronimo Building, 2nd Floor 

Tucson, AZ 85721 

rgonzale@email.arizona.edu 

nci.arizona.edu 

Principal Investigator: Roseann Gonzalez, PhD 

Public Contact: 520/621-3615; Fax: 520/624-8130 

Project Number: H133G110100 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 11 $199,998; FY 12 $199,946; FY 13 $199,990

Abstract: This project develops empirically based, criterion-referenced certification tests for Deaf 

interpreters. Relay interpreting with an intermediary interpreter who is Deaf provides the critical link in 

accommodating the significant range of language abilities and deficits present in this population (e.g., 

alingualism, semiligualism, close vision/tactile American Sign Language [ASL] for the deaf-blind, and 

others). Accommodating these diverse communicative modalities, educational deprivations, and language deficits requires strong proficiency in standardized, non-standardized, and highly idiosyncratic 

visual gestural communication (VGC) styles. Deaf interpreters specialize in the non-standard VGC 

styles that meet the culturally, educationally deprived, socially, regionally, or dialectically idiosyncratic 

communication needs of a significant proportion of the Deaf, hard of hearing, and deaf-blind communities. The ASL Proficiency Test and Deaf Interpreter Performance Test ensures certified deaf interpreters 

possess the requisite knowledge, skills, and abilities to competently perform their duties. The development and administration of these Deaf Interpreter Certification Tests builds upon existing empirical research and University of Arizona’s National Center for Interpreter Testing Research and Policy’s widely 

accepted interpreter testing model, which has been successfully applied to the development of Texas’ 

ASL/English Interpreter Certification Tests and the NIDRR-funded (2004-2008) Trilingual (ASL/Spanish/English) Interpreter Certification Tests, both of which have been validated and proven effective with 

a national audience. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Colorado 

Executive Function and Participation in Daily Life in Children with Down Syndrome 

Colorado State University 

Human Development and Family Studies 

303 Behavioral Sciences 

Fort Collins, CO 80523-1570 

deborah.fidler@colostate.edu 

Principal Investigator: Lisa Daunhauer, ScD; Deborah Fidler, PhD

Public Contact: 970/491-7870; Fax: 970/491-7975 

Project Number: H133G100197 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 10 $189,923; FY 11 $189,923; FY 12 $189,923

Abstract: Recent evidence suggests that individuals with Down syndrome (DS) demonstrate deficits in 

adaptive, goal-directed behaviors called executive function (EF) skills; however, a systematic assessment of EF skills in this population has yet to be conducted. This project investigates the specific nature of the EF profile in DS as it relates to participation in daily living activities at home and school for 

individuals with and without intellectual disabilities. The goals of this cross-sectional research project 

include: (1) systematically examine the profile of executive function (EF) skills (e.g. working memory, 

inhibition, shifting, and planning) in school-aged individuals with DS comparing the results to children 

with idiopathic developmental delays (DD); (2) examine the nature of the relationship between EF skills 

and participation in daily life (e.g. self-care, classroom participation) while controlling for IQ; and (3) to 

explore age-related changes in the EF profile in DS cross-sectionally. The evaluation of children with idiopathic intellectual disabilities provides a comparison group thereby allowing researchers to determine 

if a specific profile is associated with DS or if the impairments of participating in daily life related to EF 

are associated with intellectual disability in general. Participants are matched on chronological age, nonverbal mental age, and receptive language age. Measures include standardized tests; experimental tasks 

including a previously piloted, state-of-the-art EF battery; and both teacher and parent-report measures 

of participation in daily activities including the revised, computerized Pediatric Evaluation of Disability 

Inventory and the School Function Assessment. Outcomes of this project identify the specific aspects of 

the DS cognitive profile related to participation in daily life. This provides a foundation for developing 

more effective, evidence-based interventions to ultimately maximize the inclusion of individuals with 

DS into society. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Georgia 

Language and Literacy Outcomes of Preschool Children with Traumatic Brain Injury 

Children’s Healthcare of Atlanta, Inc. 

Department of Rehabilitation Services 

1001 Johnson Ferry Road; MOB Suite 300 

Atlanta, GA 30342 

julie.krupa@choa.org 

www.choa.org/childrens-hospital-services/rehabilitation/pediatrict-rehabilitation-research 

Principal Investigator: Juliet Haarbauer-Krupa, PhD; Tricia King, PhD (Georgia State University); 

Justine Wise (Oglethorpe University); 404/785-3284 

Public Contact: Juliet Haarbauer-Krupa, PhD 404/785-3284; Fax: 770/977-4268 

Project Number: H133G110109 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 11 $199,293; FY 12 $194,698; FY 13 $197,772

Abstract: The purpose of this study is to identify language and reading outcomes in young children 

with traumatic brain injuries (TBI) who are at high risk for disabilities that impact their academic performance and vocational outcomes. This study lends insight into the severity of long-term pediatric TBI 

outcomes via a longitudinal design with measurements taken at three time points: at the time of study 

entry between the ages of 6 years to 9 years, 11 months; one year later between the ages of 7 years to 

10 years, 11 months; and the third time point between the ages of 8 years and 11 years 11 months. TBI 

research participants are compared to a matched control group who sustained an orthopedic injury with 

no TBI. Cognitive (executive function), language, and reading measures are assessed in both groups to 

examine concurrent relations between deficits in cognitive and language abilities that may explain the 

extent of reading performance. In addition to these performance measurements, researchers examine injury and family environmental variables and their relationship outcomes. Cognitive and language predictors of reading outcomes are determined by regression analysis with reading measures as the dependent 

variable and cognitive and language measures as predictors. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Illinois 

Enhancing Written Communication in Persons with Aphasia: A Clinical Trial 

Rehabilitation Institute Research Corporation 

345 East Superior Street 

Chicago, IL 60611-4496 

lcherney@ric.org 

www.ric.org/aphasia 

Principal Investigator: Leora Cherney, PhD 

Public Contact: 312/238-1117; Fax: 312/238-2208 

Project Number: H133G120123 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 12 $199,936; FY 13 $199,845; FY 14 $199,800

Abstract: This project is a clinical trial to compare ORLA (Oral Reading for Language in Aphasia), 

a treatment that involves choral reading, to ORLA+WT (ORLA plus Writing Treatment). ORLA+WT 

involves a combination of choral reading and repeated writing of sentences. Treatment is delivered via 

computer using state-of-the-art virtual therapist technology in which a perceptive, life-like animated 

computer agent, using visible speech, reads aloud each sentence in unison with the person with aphasia 

and then directs the participant to copy the sentence and write it from memory. Participants can work intensively and independently on their home computer which is connected to a central server. This allows 

the clinician to monitor participant use and progress remotely either in real time during the treatment 

session or after the session at a convenient time. ORLA+WT and ORLA groups practice for nine hours 

per week for a six week period of time. Language and communication skills are evaluated pre-treatment, 

immediately post-treatment, and at six weeks after the end of treatment to assess maintenance effects. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Kansas 

Examination of the Use of a Spanish Version of the Online and Applied System for Intervention 

Skills (OASIS) Training Program with Parents of Children with an Autism Spectrum Disorder 

University of Kansas Medical Center 

Center for Child Health and Development 

3901 Rainbow Boulevard, MSN 4003 

Kansas City, KS 66160 

lhpowell@ku.edu 

www.lsi.ku.edu/research/projects/Heitzman-Powell_L/autism_children_technologies.shtml 

Principal Investigator: Linda S. Heitzman-Powell, PhD 913/945-6604 

Public Contact: 913/588-5588; Fax: 913/588-5916 

Project Number: H133G110131 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 11 $200,000; FY 12 $200,000; FY 13 $200,000

Abstract: This project seeks to address the access and training deficit for Spanish-speaking parents of 

children with autism spectrum disorders (ASD) by adapting the Online and Applied System for Intervention Skills (OASIS) Training Program for use with parents who speak Spanish and have a child with an 

ASD to teach them how to implement empirically-based interventions with their child. The development 

of this program proceeds across five phases: (1) initial project development, (2) translation and adaptation of existing training resources for Hispanic caregivers, (3) formative evaluation and revision, (4) 

full program evaluation and revision, and (5) final analysis and preparation for dissemination. During 

training, parents practice the techniques discussed in that week’s online tutorials with their child while 

receiving guidance and immediate feedback from a bilingual clinician with a background in behavior 

analysis and trained to implement OASIS. Program effectiveness is evaluated based on: parental knowledge and skill fluency, child adaptive behaviors, and reported family quality of life. In addition, families 

complete exit surveys to elicit feedback regarding program improvement and any problems they experienced, particularly regarding cultural and/or language barriers experienced. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Kansas 

Accommodations and ADA for Post-Secondary Students with Disabilities 

The University of Kansas 

1000 Sunnyside Avenue, Room 4089 

Lawrence, KS 66045-7555 

glen@ku.edu 

Principal Investigator: Glen W. White, PhD; Jean Anne Summers, PhD

Public Contact: 785/864-4095; Fax: 785/864-5063 

Project Number: H133G090222 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: Joyce Y. Caldwell 

NIDRR Funding: FY 09 $199,997; FY 10 $199,627; FY 11 $199,146; FY 12 (No-cost extension 

through 9/30/2013)

Abstract: This project develops an accommodations training technology (ATT) designed to maximize 

the skills of students with disabilities to advocate for accommodations needed to succeed in post-secondary educational settings. The ATT uses evidence-based research from a recently completed single-subject 

research study that empirically demonstrated post-secondary students’ improvement of their self-advocacy skills and knowledge about their legal rights and responsibilities under the ADA, by participating in 

a researcher-designed training package. The new program further enhances the previous work by using 

a state-of-the art interactive computer program that is scaleable and meets the preferences of the target 

population, coupled with a skills based training component that is both flexible and portable (e.g., handheld electronic devices via interactive text with graphics, Adobe Flash, Apple Quicktime, enhanced iPod 

and MP3 media formats). The project goal is to provide post-secondary students with disabilities the 

knowledge and skills to acquire needed ADA accommodations in post-secondary educational settings. 

The objectives are: (1) utilize the Consumer Empowered Team participant advisers to review and update 

current content curriculum and design a facilitator manual; (2) design online components to deliver the 

ATT model; (3) replicate face-to-face application of the ATT model in Round 1 with six students with 

disabilities at one university setting; (4) replicate the revised (from Round 1) ATT model in Round 2 

with 24 students with disabilities at 2 universities, using online applications and facilitator manual; (5) 

conduct a pilot test of the finalized (from Rounds 1 and 2) ATT model with 60 students with disabilities 

at 2 universities; and (6) develop and implement a marketing plan to distribute and publicize the product 

that results from this development project. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Kentucky 

TerpTube: An Accessible Online Portfolio for Deaf Mentors and Sign Language Interpreters 

Eastern Kentucky University 

Department of American Sign Language and Interpreter Education 

521 Lancaster Avenue 

Richmond, KY 40475 

daniel.roush@eku.edu 

Principal Investigator: Daniel Roush 

Public Contact: 859/622-8892

Project Number: H133G110190 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 11 $199,938; FY 12 $199,961; FY 13 $199,982

Abstract: This project develops an accessible online environment that supports mentoring between Deaf 

users of American Sign Language (ASL) and sign language interpreters in an effort to promote language 

and cultural competence. The web-based project software builds on social networking concepts and the 

sharing of personal digital videos in a one-stop-shop mentoring portfolio system (TerpTube). Deaf mentors provide asynchronous annotations to video-recorded interpretations in their native ASL. Likewise, 

interpreters benefit from seeing ASL video-based annotations since this, not text, provides the most appropriate format for modeling ASL. The ability to add video-based ASL annotations to video is accomplished through the application of SignLinking technology originally developed by partners at Ryerson 

University. In addition to applying SignLinking, the TerpTube mentoring portfolio system is integrated 

with existing online mentoring projects as well as a social networking website. It also includes accessible interpreter practice materials, mentoring best practices, and tips for setting up a mentoring business. 

This project addresses the need to increase involvement of Deaf ASL users in the education of professional sign language interpreters. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Massachusetts 

Life Skills: Transitioning from Homelessness and Isolation to Housing Stability and Community 

Integration 

Boston University 

Sargent College of Health and Rehabilitation Sciences

Department of Occupational Therapy 

635 Commonwealth Avenue 

Boston, MA 02215 

helfrich@bu.edu 

people.bu.edu/helfrich 

Principal Investigator: Christine A. Helfrich, PhD 

Public Contact: 617/353-8947; Fax: 617/353-2926 

Project Number: H133G090046 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 09 $199,998; FY 10 $199,994; FY 11 $199,998; FY 12 (No-cost extension 

through 9/30/2013)

Abstract: This randomized control trial implements, evaluates, and disseminates a life skills intervention to increase skills necessary for achieving housing stability and community participation and living 

for 150 homeless adults with disabilities. These skills include home and self-care management, food 

management, financial management, and safe community participation. The objectives of this study 

are to: (1) evaluate the ability of the intervention to improve housing stability and increase participants’ 

level of community integration, including the steps they take toward employment and self-sufficiency; 

(2) identify the feasibility issues inherent in delivering interventions to this highly vulnerable population; and (3) train agency staff and peer mentors to enable project sustainability. This three-year project 

is a partnership between Boston University, HomeStart, the Pine Street Inn, and the National Center for 

Family Homelessness. These Boston-area partner agencies offer Housing Search, Housing Stabilization, 

and Housing First programs, which provide a diverse set of conditions for implementation evaluation. 

The project uses a manualized intervention that was developed for a previous project with homeless 

adults with mental illness and is based on empowerment theory, social learning theory, and the model of 

human occupation. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Massachusetts 

Do Animations Facilitate Symbol Understanding in Children with Autism? 

Northeastern University 

Department of Speech, Language, Audiology, and Pathology 

151B Forsyth Street 

Boston, MA 02115-5000 

r.schlosser@neu.edu 

Principal Investigator: Ralf W. Schlosser, PhD 

Public Contact: 617/373-3785; Fax: 617/373-8756 

Project Number: H133G100187 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 10 $199,996; FY 11 $197,259; FY 12 $197,259

Abstract: This project investigates the use of animation to facilitate the understanding of graphic symbols for verbs and prepositions in children with autism and/or pervasive developmental disorders — not 

otherwise specified, and if so, which animated graphic set is most effective. This project designed two 

studies involving the widely used Picture Communication Symbols (PCS), and the newly designed ALP 

Animated Graphics Set to gather benchmark data on the effects of animations versus static images for 

verbs and prepositions in preschoolers without disabilities across three age groups. Guessability and ease 

of identification are monitored as outcomes. Additionally, investigators assess the preferences of children 

with autism and their parents for both symbol format (animated, static) and symbol type (ALP, PCS) to 

determine the social validity of these symbols. Study results contribute to evidence-based knowledge 

on (1) symbol selection, (2) rehabilitation technology infusion, (3) improving existing symbols, and (4) 

enabling future preference-enhanced intervention research. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Massachusetts 

Evaluation of “Project TEAM (Teens making Environmental and Activity Modifications)”: 

Effectiveness, Social Validity, and Feasibility 

Trustees of Boston University 

College of Health and Rehabilitation Sciences:

Sargent College; Department of Occupational Therapy

635 Commonwealth Avenue (SAR 503) 

Boston, MA 02215 

kramerj@bu.edu 

Principal Investigator: Jessica M. Kramer, PhD 

Public Contact: 617/353-2702; Fax: 617/353-2926 

Project Number: H133G120091 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 12 $199,696; FY 13 $198,156; FY 14 $199,657

Abstract: The purpose of this study is to determine the extent to which Project TEAM (Teens making 

Environment and Activity Modifications) is an effective, socially valid, and feasible intervention that 

prepares youth with developmental disabilities ages 14-21 to respond to environmental barriers and 

increases participation in school, work, and the community. Project TEAM is a manualized intervention 

co-facilitated by a disability advocate and a licensed professional. The intervention includes eight group 

sessions and two experiential learning field trips. In addition, young adults with disabilities serve as peer 

mentors on field trips and contact youth weekly to support attainment of goals. Project TEAM outcomes 

are to: increase youths’ knowledge of environmental factors and modification strategies; reduce the 

impact of environmental barriers on participation; increase self-efficacy and self-determination; and increase participation in a personal activity goal in the area of education, employment, or community life. 

This project builds on a participatory action research partnership with disability community stakeholders 

to address the following research questions: (1) To what extent do youth with disabilities participating in 

Project TEAM achieve intervention outcomes? (2) What are the characteristics of youth with disabilities 

who most benefit from Project TEAM? (3) To what extent are goals, procedures, and outcomes of Project TEAM important and acceptable (socially valid) to youth with disabilities? 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Massachusetts 

Toolkit of Recovery Promoting Competencies for Mental Health Rehabilitation Providers 

Boston University 

Center for Psychiatric Rehabilitation 

940 Commonwealth Avenue West 

Boston, MA 02215-1203 

mfarkas@bu.edu 

www.bu.edu/cpr/research/ongoing/rtc2014/index.html 

Principal Investigator: Marianne Farkas, ScD 

Public Contact: 617/353-3549; Fax: 617/353-7700 

Project Number: H133G120117 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 12 $199,714; FY 13 $199,921; FY 14 $199,869

Abstract: This project develops, evaluates, and disseminates two Recovery Promoting Competencies 

Toolkits, one to better prepare providers when they serve Latinos and one to better prepare providers 

when they serve non-Latinos. The Toolkits for providers of mental health and rehabilitation services 

enhance recovery promoting competencies by: (1) increasing provider attention to the factors that 

individuals with psychiatric disabilities perceive to be important in facilitating recovery; (2) increasing 

their knowledge about recovery and these factors; (3) increasing their ability to use strategies and core 

relationship skills to promote recovery from serious mental illnesses. The development of the Toolkits is 

informed by research findings from previous NIDRR-funded studies that contributed to the development 

of the Recovery Promoting Competency Scale for both providers, including one for those serving Latinos. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Michigan 

The Effects of a Bicycle Training Intervention on Health, Physical Activity, Sleep, and Community 

Participation in Youth with Down Syndrome and Autism Spectrum Disorders 

University of Michigan 

Center for Motor Behavior and Pediatric Disabilities 

1402 Washington Heights, 3126 OBL 

Ann Arbor, MI 48109-2013 

ulrichd@umich.edu 

www.kines.umich.edu/research/cmbpd.html 

Principal Investigator: Joseph Hornyak, MD; Dale Ulrich, PhD

Public Contact: 734/615-1904; Fax: 734/647-2808 

Project Number: H133G090006 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: Margaret Campbell, PhD 

NIDRR Funding: FY 09 $195,188; FY 10 $196,819; FY 11 $200,000; FY 12 (No-cost extension 

through 09/30/2013)

Abstract: This three-year study utilizes a randomized trial design to determine the effects of an individualized bicycle training intervention on functional performance, time spent in moderate to vigorous 

physical activity, patterns of sleep, and community participation and integration of youth with Down 

Syndrome (DS) and autism spectrum disorder, aged 9 to 18 years. Participants who are randomly assigned to the experimental group (EXP) receive the bicycle training during the first year while the control group (CON) does not receive the bicycle training until the second year but receives alternative educational or community-based lessons while they wait. After receiving their bicycle training intervention, 

participants in the EXP and CON groups are monitored for 24 months to help determine the frequency 

of bicycle riding, environmental factors that influence the frequency of bike riding; the frequency of 

falls; their pattern of night time sleep; the amount of time they spend in sedentary, light, moderate, and 

vigorous physical activity; self and parent perceptions of their riding skill; with whom they ride, where 

in the community they ride their bicycle; and in what other activities they participate in their community. 

At entry into the study, none of the participants are able to ride a two-wheel bicycle. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Minnesota 

Partnerships in Wellness: Training and Technical Assistance Model 

Regents of the University of Minnesota 

The Institute for Community Integration 

210 Pattee Hall

150 Pillsbury Drive, SE

Minneapolis, MN 55455 

salm0054@umn.edu 

Principal Investigator: Sheryl Larson, PhD; Patricia Salmi, PhD; 612/624-6024 (Larson) 

Public Contact: Patricia Salmi 612/625-9700; Fax: 612/625-6619 

Project Number: H133G120090 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 12 $200,000; FY 13 $200,000; FY 14 $200,000

Abstract: x This project develops a research-based, universally-designed health promotion curriculum 

for adults with intellectual and/or developmental disabilities (I/DD) that addresses the unique learning 

needs of this population. The curriculum partners an adult with I/DD with a peer “buddy” to increase 

comprehension of the material. Project objectives include: (1) Develop a universally-designed health 

promotion curriculum suitable for use by adults with I/DD that involves support staff or family members 

throughout the training; and (2) field-test the health promotion curriculum with people with I/DD and a 

family member or support staff member. Development of this curriculum uses an iterative process that 

involves input from adults with I/DD, support staff members, family and foster family members, as well 

as a technical advisory group from both academic and community sources. The curriculum is tailored to 

people with moderate to severe intellectual disabilities and is designed to be completed by teams consisting of a person with I/DD and an adult family or foster family member, or a direct support staff member. 

The goals are to improve the quality of life and longevity of people with I/DD by increasing physical 

activity, reducing obesity and weight gain; prevent lifestyle related secondary conditions; and reduce associated health care costs. 
NIDRR Program Directory FY 2012 - Participation and Community Living

4-30

Field Initiated Projects (FIPs) 

Montana 

Participation Interference Patterns: Investigating the Relative Impact of Pain and Environmental 

Barriers on Participation 

University of Montana 

The University of Montana Rural Institute: 

A Center for Excellence in Disability Research, Education and Services 

52 Corbin Hall 

Missoula, MT 59812-7056 

cravelsoot@ruralinstitute.umt.edu 

Principal Investigator: Craig Ravesloot, PhD; Catherine Ipsen, PhD; 406/243-2992 (Ravesloot); 

406/243-4562 (Ipsen) 

Public Contact: Craig Ravesloot, PhD 406/243-2992; Fax: 406/243-2349 

Project Number: H133G110077 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Joyce Y. Caldwell 

NIDRR Funding: FY 11 $199,980; FY 12 $199,945; FY 13 $199,977

Abstract: This study examines the impact of pain and environmental barriers on community participation. The study includes a population-based random sample of 350 participants aged 18 to 65 with 

mobility and sensory impairments in a longitudinal, population-based study of community participation. 

Researchers collect 3 surveys over 12 months to analyze general patterns of pain intensity, environmental barriers, and participation. The study employs a technology-based measurement strategy called Ecological Momentary Assessment (EMA) that uses handheld computers (i.e., iPod Touch) to more closely 

examine the temporal relationships between these three variables. This investigation of the dynamic 

ecological model of disability and participation explores participation interference patterns that emerge 

from the interaction of environmental barriers and pain. The study has three goals: (1) increase understanding of how personal factors like pain interact with environmental barriers like physical accessibility 

to influence community participation in adults with mobility and sensory impairments living in the community, (2) establish methods that rehabilitation researchers and practitioners can use to better evaluate 

the dynamic interplay of personal and environmental factors on participation outcomes, and (3) publish 

results that rehabilitation scientists and practitioners can use to enhance interventions and increase participation of adults with disabilities. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

New York 

Peer-to-Peer Project: A Peer Support Network for Students with Significant Intellectual and 

Developmental Disabilities in Higher Education 

Syracuse University 

Taishoff Center for Inclusive Higher Education 

101 Hoople Building

805 South Crouse Avenue 

Syracuse, NY 13244 

wharbour@syr.edu 

sup2p.wordpress.com 

Principal Investigator: Wendy S. Harbour, PhD 

Public Contact: 315/443-1288; Fax: 315/443-4338 

Project Number: H133G100226 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 10 $195,506; FY 11 $188,867; FY 12 $196,832

Abstract: This project develops a network of undergraduates at the School of Education, to provide peer 

supports to students with significant intellectual and developmental disabilities (I/DD) taking classes at 

Syracuse University (SU). SU has two programs for students with I/DD: OnCampus, through the Syracuse City School District (a dual enrollment program for students up to age 21 in high school); and the 

Access Program, with Onondaga Community Living (for students over age 21 who have finished high 

school). Students with I/DD at SU audit courses to meet personal, academic, and vocational goals. The 

Peer-to-Peer Project operates from an innovative, universally designed, and person-centered framework that uses peer support students in flexible, individualized ways, as needed by students with I/DD 

to fulfill goals and maximize inclusion. Peer support students commit to one year that includes training 

through a three-credit independent study option. To reduce the potential of a medicalized helping model 

and increase age-appropriate peer interactions, all students also interact socially, through social activities and the use of social media. All participants with intellectual disabilities receive iPads to support 

academic and social interactions. The project begins as a one-semester pilot, fully implemented, and is 

expanded in years two and three to include greater numbers of participants. Intensive mixed-methods 

evaluation occurs at all phases, and is supervised by an external evaluator. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

North Carolina 

Improving Money Management Skills in Veterans with Psychiatric Disabilities 

University of North Carolina at Chapel Hill 

School of Medicine

Department of Psychiatry 

Forensic Psychiatry Program

Campus Box 7160 

Chapel Hill, NC 27599 

eric.elbogen@unc.edu 

Principal Investigator: Eric Elbogen, PhD 

Public Contact: 919/972-7451, ext. 3

Project Number: H133G100145 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 10 $198,320; FY 11 $198,141; FY 12 $199,785

Abstract: This project evaluates a pilot-tested, stake-holder informed intervention grounded in principles of psychiatric rehabilitation designed to develop money management skills and informed financial 

judgment among veterans with psychiatric disabilities. Veterans with psychiatric disabilities face unique 

challenges concerning money management. Financial strain, money mismanagement, and homelessness 

have been well documented among veterans with psychiatric disabilities and linked to poor outcomes. 

$teps for Achieving Financial Empowerment ($AFE) is an individualized, psycho-educational intervention that teaches veterans with psychiatric disabilities how to save money, create a viable budget, avoid 

money scams and financial exploitation, and access vocational and mental health resources. Two-hundred veterans with psychiatric disabilities are randomly assigned to two groups: (1) the $AFE intervention or (2) a “usual care” control, and interviewed at baseline and six months. By fostering financial 

skills and judgment, the $AFE increases employment, boosts work motivation, and reduces disablement; 

thereby reducing psychiatric symptoms and homelessness among veterans with psychiatric disabilities 

and bolstering self-determination and empowerment within this population. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

North Carolina 

Implementing Psychiatric Advance Directives with Peer Specialist Facilitators 

Duke University 

Box 3071 Medical Center 

Durham, NC 27701 

rebecca.hausmann@duke.edu 

www.nrc-pad.org 

Principal Investigator: Jeffrey W. Swanson, PhD 919/682-4827 

Public Contact: Rebecca Hausmann 919/682-8394; Fax: 919/682-1907 

Project Number: H133G120070 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 12 $196,140; FY 13 $198,724; FY 14 $197,435

Abstract: This project studies the effectiveness of two models for assisting individuals with serious 

mental illness (SMI) to complete psychiatric advance directives (PAD), using trained peer facilitators 

(persons in recovery from serious mental illness) and non-peer clinicians on Assertive Community 

Treatment teams. Both are built on the Facilitation Psychiatric Advanced Directive (FPAD), a structured, 

one-on-one session that guides individuals with SMI through a person-centered, recovery-focused process of completing a PAD . Participants are randomly assigned to either the Peer-Facilitated Psychiatric 

Advance Directive or the (non-peer) Clinician Facilitated Psychiatric Advance Directive. Participants 

are interviewed before and after the FPAD intervention to determine completion rates, content and structure of resulting PAD documents, ratings of PADs’ feasibility and concordance with practice standards, 

as well as to gauge participants’ sense of empowerment, working alliance, and treatment motivation. The 

ultimate goal of the research is to provide reliable evidence to guide policymakers in efforts to costeffectively institute PADs, and PAD facilitation, as routine practice within the array of community-based 

behavioral healthcare services for adults with SMI. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Ohio 

Web Therapy to Improve Outcomes After Traumatic Brain Injury in Young Children 

Children’s Hospital Medical Center 

Pediatric Rehabilitation 

3333 Burnet Avenue; MLC 4009 

Cincinnati, OH 45229-3039 

shari.wade@cchmc.org 

Principal Investigator: Shari L. Wade, PhD 

Public Contact: 513/636-7480; Fax: 513/636-7360 

Project Number: H133G060167 

Start Date: December 01, 2006 

Length: 36 months 

NIDRR Officer: Joyce Y. Caldwell 

NIDRR Funding: FY 06 $149,379; FY 07 $147,834; FY 08 $146,762; FY 09 (No-cost extension 

through 11/30/2010); FY 10 (No-cost extension through 11/30/2011)

Abstract: This project adapts an online family problem solving tool for families of young children with 

traumatic brain injury (TBI) (I-InTERACT: Internet-based Interacting Together Everyday - Recovery 

After Childhood TBI) and compares it to an Internet resource comparison group (IRC) in a randomized 

clinical trial. Participants include families of 40 children, aged 3 to 8 years, who experienced a moderate to severe TBI 1 to 24 months prior to study participation. In I-InTERACT, a trained counselor guides 

families through a six-month structured online parenting skills-building program via a website and oneon-one videoconference sessions. The IRC group receives computers, high-speed Internet access, and 

links to brain injury information and resources, but not the I-InTERACT website content or synchronous 

sessions. Primary outcomes, to be assessed pre- and post-treatment, include parenting behaviors (e.g., 

warmth, responsiveness, and criticism) and parent-child communication. Secondary outcomes include 

child behavior problems and parent psychological distress. The overarching goal of this project is to 

reduce the risk of long-term behavioral problems and disability in young children following TBI by 

equipping parents with increased coping and parenting skills in a cost effective fashion. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Ohio 

Deaf Off Drugs and Alcohol: Evaluating a Technology-Assisted E-Therapy Program for SUD 

Treatment 

Wright State University 

Boonshoft School of Medicine 

PO Box 927 

Dayton, OH 45410-0927 

josephine.wilson@wright.edu 

www.med.wright.edu/citar/sardi/doda 

Principal Investigator: Josephine F. Wilson, DDS, PhD 

Public Contact: 937/775-1484

Project Number: H133G110285 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 11 $84,324; FY 12 $62,629; FY 13 $53,045

Abstract: This project investigates the effectiveness of Deaf Off Drugs and Alcohol (DODA) based on 

five outcome measures: the Substance Abuse Screener in American Sign Language, Addiction Severity Index, Satisfaction with Life Scale, Rosenberg Self-Esteem Scale, and Beck Depression Inventory, 

which is administered before substance use disorder (SUD) treatment and six months after SUD treatment has begun. Numerous barriers exist when attempting to provide culturally-appropriate SUD treatment to persons who are Deaf and hard of hearing (Deaf). These include a lack of accessible community-based treatment providers, a low geographic census of Deaf persons who are referred to treatment at 

any given time, difficulties in maintaining anonymity for Deaf individuals in treatment, minimal alternatives for accessible self-help support groups, and a general lack of information about SUD and Deafness 

by SUD treatment and Deaf service providers. Since 2008, the DODA Program has provided culturally 

appropriate cessation and recovery support services via a telemedicine program to Deaf individuals who 

are clinically diagnosed with a SUD. DODA is a collaborative effort of the Substance Abuse Resources 

and Disability Issues Program at the Boonshoft School of Medicine at Wright State University; the Consumer Advocacy Model Program in Dayton (Montgomery County, OH); the Deaf Community Resource 

Center; Communication Service for the Deaf of Ohio; and the Ohio Department of Alcohol and Drug 

Addiction Services. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Ohio 

Developing College Campuses as Transition Settings for Students with Severe and Multiple 

Disabilities Aged 18-21 

Kent State University 

College and Graduate School of Education, Health & Human Services

Educational Foundations and Special Programs 

405 White Hall 

Kent, OH 44242 

Principal Investigator: Robert Flexer, PhD 

Public Contact: 330/672-0584; Fax: 330/672-2512 

Project Number: H133G080158 

Start Date: October 01, 2008 

Length: 36 months 

NIDRR Officer: Joyce Y. Caldwell 

NIDRR Funding: FY 08 $199,973; FY 09 $199,871; FY 10 $199,973; FY 11 (No-cost extension 

through 9/30/2012); FY 12 (No-cost extension through 9/30/2013)

Abstract: This project is designed to address need for sustainable, community-based programs for 

students with severe and multiple disabilities (SMD) aged 18 to 21 by using the college campus as a 

transition setting. It also addresses the need for SMD transition professionals to obtain skills in the areas 

of person-centered planning, community partnering, and interagency collaboration. Students with SMD 

are enrolled in a college-level continuing education class on life planning provided by Kent State’s 

Career Services Center. A university instructor directs this class, and collaborating SMD professionals and Kent State students receive service learning credits for providing person-centered planning and 

individualized campus activities for the participating students with SMD. These planning and campus 

activities are coordinated with students’ individual education and employment plans. Students with SMD 

are also enrolled in at least one college-level class each semester to assure that they have access to all of 

Kent State’s services including career planning, health and wellness, student employment, extracurricular activities, and life-long learning opportunities. To achieve these outcomes, project staff pursue five 

objectives: (1) develop college classes for 30 students with SMD that engage practicing and prospective 

transition professionals in their life and career planning; (2) develop and implement daily campus activities for 30 students with SMD based on their life plans; (3) engage students with SMD, their teachers, 

university faculty, and other transition stakeholders in evaluating, refining, and supporting this model; 

(4) develop materials for replication of this model; and (5) disseminate and replicate this project at other 

universities. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Oregon 

Defining Success: Web-Based Transition Training for Students with Traumatic Brain Injury 

Western Oregon University 

Center on Brain Injury Rehabilitation and Training 

99 West 10th Avenue, Suite 370 

Eugene, OR 97401 

havlisp@wou.edu 

www.cbirt.org/our-projects; cbirt.org/our-projects/defining-success 

Principal Investigator: Bonnie Todis, PhD 541/346-0595 

Public Contact: Priscilla Havlis 541/346-0567

Project Number: H133G110126 

Start Date: October 01, 2011 

Length: 36 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 11 $199,999; FY 12 $199,999; FY 13 $199,999

Abstract: This project develops and evaluates the efficacy of an interactive, web-based information 

and training program, Defining Success: Web-based transition training for students with traumatic brain 

injury (TBI). The program includes modules for (1) students with TBI to teach them self-determination, 

self-advocacy, and problem-solving strategies to cope with the challenges of TBI; (2) parents of students 

with TBI to help them better understand the on-going challenges following adolescent TBI and how to 

support their child in the transition process; and (3) educators, to increase their awareness of the needs 

of students with TBI and their families and to teach them how to modify transition materials to meet 

the needs of these students. The website includes a secure tracking portal, accessible by all members of 

the transition team, via the computer or cell phone. The Defining Success site is developed, tested, and 

revised in partnership with a national group of consultants, family members, students with TBI, parents, 

and educators. Product testing occurs across three phases, culminating in a randomized control trial with 

a national sample of school-based teams consisting of students with TBI, parents, and educators. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Oregon 

GPS-TBI: Generalizing Problem Solving Strategies to Everyday Environments Following TBI 

Western Oregon University

Teaching Research Institute

Center on Brain Injury Research and Training 

99 West 10th Avenue, Suite 370 

Eugene, OR 97401 

ehlhardtl@wou.edu 

www.cbirt.org 

Principal Investigator: Laurie Ehlhardt Powell, PhD 

Public Contact: 541/346-0572; Fax: 541/346-0599 

Project Number: H133G120149 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 12 $200,000; FY 13 $200,000; FY 14 $200,000

Abstract: This project develops and experimentally evaluates the GPS-TBI: Generalizing Problem 

Solving Strategies to Everyday Environments Following Traumatic Brain Injury (TBI) program. The 

three-stage process includes: (1) GPS–Acquisition: The client and coach (rehabilitation staff) select the 

most relevant types of problems to address. The client then participates in an online training program 

to learn an evidence-based problem solving strategy sequence; (2) GPS–Adaptation: The client uses a 

customized mobile application to support generalized use of the problem solving strategy sequence in 

everyday life; and (3) GPS–Follow Up: The client and coach meet for follow-up sessions to assess the 

day-to-day impact of the mobile application and to modify the program, as needed. Program development and usability testing include focus groups, structured interviews, and testing with individuals with 

TBI, their families, and professionals to inform development of the prototype. The final program is disseminated through the project website and Brainline.org. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Oregon 

Parent-Infant Interaction Project (PIIP) 

Portland State University 

Graduate School of Education

Special Education (SPED) 

PO Box 751 

Portland, OR 97207-0751 

munsonl@pdx.edu 

Principal Investigator: David Allen, PhD; Ruth Falco, PhD; Leslie J. Munson, PhD

Public Contact: Leslie J. Munson, PhD 503/725-4687; Fax: 503/725-5599 

Project Number: H133G080132 

Start Date: October 01, 2008 

Length: 36 months 

NIDRR Officer: Joyce Y. Caldwell 

NIDRR Funding: FY 08 $199,945; FY 09 $199,950; FY 10 $199,938; FY 11 (No-cost extension 

through 9/30/2012); FY 12 (No-cost extension through 9/30/2013)

Abstract: The Parent-Infant Interaction Project (PIIP) develops an evidence-based curriculum for implementation by parents with intellectual disabilities and their professional or paraprofessional coaches 

within natural environments to enhance parent-infant interaction and child development. Goals of PIIP 

include: (1) develop a research-based curriculum, coaching model, and training materials for use by parents with intellectual disabilities and their coaches in a collaborative process to enhance the parent-infant 

relationship and nurture child development; (2) conduct single subject studies of the effects of the PIIP 

coaching model, curriculum, and training materials, including multiple-baseline design studies across 

goals and the collection of additional qualitative data; and (3) field-test and evaluate the coaching model, 

curriculum, and training materials through a multi-method study across three different types of early 

childhood/parent support programs. Partners in PIIP include Early Head Start and Early Intervention/

Early Childhood Special Education, as well as a program providing supports for parents with intellectual 

disabilities. The PIIP coaching model incorporates innovative strategies and applies technology that is 

accessible to individuals with intellectual disabilities. Innovative strategies include a model for coaching 

that focuses on self-determination and empowerment of parents as advocates and decision-makers for 

themselves and their child. The Infant-Caregiver Interaction Scale provides a tool to guide collaborative 

observation, goal-setting, and continuous feedback for parents and their coaches. The project develops 

accessible technology, including a DVD of examples of interaction activities with video-modeling, for 

use in coaching parents as they learn strategies to enhance parent-infant interaction within daily play 

activities. Strategies for planning individualized accommodations includes easy-reading/picture activity 

schedules and menus, audio prompts, social stories, and self-management systems to address parentchild needs. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

Oregon 

Randomized Field-Test of the Internet-based Safer and Stronger Program for Women with 

Disabilities 

Portland State University 

Regional Research Institute for Human Services 

PO Box 751 

Portland, OR 97207-0751 

oschwald@pdx.edu 

Principal Investigator: Mary Oschwald, PhD 

Public Contact: 503/725-9602

Project Number: H133G100237 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Joyce Y. Caldwell 

NIDRR Funding: FY 10 $200,000; FY 11 $200,000; FY 12 $200,000

Abstract: This project studies an Internet-based interpersonal violence (IPV) prevention program 

specifically designed to meet the unique needs of women with diverse disabilities. Researchers collaborate with three centers for independent living (CILs) to implement three interrelated studies: (1) a pilot 

study ensuring the consistent implementation of the field-test and the fidelity of protocols; (2) an Internet 

Safer and Stronger Program (SSP) Field-test Study; and (3) a Member-checking Focus Group Evaluation designed to provide qualitative feedback about receiving and delivering the Internet-based SSP. 

The SSP provides information about IPV, risk factors, and safety-promoting strategies while integrating 

survivor stories and affirming narration. The Internet SSP Field-test evaluates the feasibility and efficacy 

of the Internet SSP, delivered by CILs alone or in conjunction with support from a peer who is a female 

staff member with a disability. This study uses a within- and between-groups pre/post-test design with 

participants assessed at baseline, post-intervention, and three months follow-up. The SSP intervention, 

delivered alone or with peer support is measured by three outcome variables (abuse awareness, self-efficacy for addressing abuse, and use of safety-promoting behaviors) when compared to a health program. 

Project analyses also include a comparison of the two SSP interventions and an examination of whether 

abuse history moderates the effect of the SSP on outcomes. This project is designed to be applicable to 

domestic violence and disability-related service providers and offers an Internet-based abuse awareness 

program designed specifically for women with diverse disabilities who often lack access to communitybased IPV prevention programs. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Field Initiated Projects (FIPs) 

South Carolina 

Investigating Environmental Factors Affecting Community Integration 

University of South Carolina 

Department of Psychology 

1512 Pendleton Street 

Columbia, SC 29208 

kloos@sc.edu 

Principal Investigator: Bret Kloos, PhD 

Public Contact: 803/777-2704; Fax: 803/777-9558 

Project Number: H133G090036 

Start Date: August 16, 2009 

Length: 36 months 

NIDRR Officer: Doris Werwie, PhD 

NIDRR Funding: FY 09 $199,962; FY 10 $199,585; FY 11 $199,433; FY 12 (No-cost extension 

through 08/15/2013)

Abstract: This project examines environmental factors that can promote or impede participation in 

community life for persons with psychiatric disabilities who live independently. While recent research 

has documented how individual factors can affect integration (e.g., participation in activities, feelings 

of belonging), relatively little is known about the community-based factors that can affect community 

integration for persons with mental illness. The study has three specific aims: (1) document the range 

of housing and neighborhood environment conditions for persons with psychiatric disabilities who live 

in their own dwelling without resources from supported housing; (2) develop and test a framework of 

environmental factors that can promote or impede community integration across four domains: physical, 

social, psychological, and opportunities for integration; and (3) advance methodology for community 

integration research by (a) testing competing measures of physical, social, psychological integration, and 

integration opportunities, and (b) using Geographic Information Systems to facilitate analyses of environmental factors. This project addresses the gap in knowledge about environmental factors and integration by investigating how housing conditions, neighborhood conditions, interpersonal relationships tied 

to housing, and census indicators of community composition may affect community integration efforts 

of persons with psychiatric disabilities. 
NIDRR Program Directory FY 2012 - Participation and Community Living

4-42

Field Initiated Projects (FIPs) 

Tennessee 

Improving Trauma Outcomes: A Goal Management Approach 

Vanderbilt University Medical Center 

4200 MCE Street 

Nashville, TN 37232-8774 

kristin.archer@vanderbilt.edu

kristin.a.swygert@vanderbilt.edu

Principal Investigator: Kristin R. Archer, PhD, DPT 

Public Contact: 615/322-2732

Project Number: H133G120052 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 12 $199,989; FY 13 $199,995; FY 14 $199,372

Abstract: This project conducts a three-group randomized controlled trial to determine the efficacy 

of Goal Management Training (GMT), a structured manual-based intervention targeting executive 

functions that impact a person’s ability to carry out daily tasks, with the goal of improving cognitive 

functioning, functional status, and psychological health in trauma survivors with mild traumatic brain 

injury (TBI). Eligible participants are randomized to 10 weeks of (1) telephone-based GMT, (2) telephone-based attention-control, or (3) usual care. Primary outcomes include observed and self-reported 

executive functioning and self-reported functional status as measured by a battery of standardized and 

previously validated cognitive tests and instruments. Secondary outcomes consist of depressive and 

post-traumatic stress disorder symptoms. This intervention serves to broadly disseminate evidence-based 

cognitive strategies to a trauma population that has difficulty returning to productive life both inside and 

outside the home due to profound functional and psychological disability. 
NIDRR Program Directory FY 2012 - Participation and Community Living

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Small Business Innovation Research (SBIR), Phase II 

Oregon 

LifeWorks: Development of an a Web-Based Life Management Application for Individuals with 

Cognitive Disabilities and Caregivers 

Assistech Systems, LLC 

Technology Development 

99 West 10th Avenue, Suite 397 

Eugene, OR 97401 

tkeating@eugeneresearch.org 

Principal Investigator: Thomas Keating, PhD 

Public Contact: 541/342-3763; Fax: 541/342-4310 

Project Number: H133S110051 

Start Date: October 01, 2011 

Length: 24 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 11 $249,724; FY 12 $248,746

Abstract: This project develops a prototype of a web-based self-management application for individuals 

with cognitive disabilities and those who support them. The application uses a database of an individual’s life and needs to provide relevant, actionable, and accessible data to the consumer, family members, 

and/or support staff. Features include cognitively accessible interface, push notifications for consumers 

and caregivers, easy data entry for daily event tracking, and social networking capabilities. This project 

conducts usability testing and effectiveness evaluation of the product working directly with consumers 

and caregivers representing the target user group. This includes experimental field studies of impact on 

self-management and quality of life. 
Contents

Rehabilitation Research and Training Centers (RRTCs) ......................................................................3

Field Initiated Projects (FIPs) ...............................................................................................................4

Disability Demographics

The ultimate goal of NIDRR’s disability demographics effort is to generate new 

information that can be used by individuals with disabilities, service providers, 

policymakers, and others working to identify and eliminate disparities in employment, 

participation and community living, and health and function. NIDRR has long funded 

studies that mine data to address the full range of social, health, and economic facets of 

disability and that compare findings across data sources. There are significant correlates 

with disability, such as aging; and there are a variety of links between disability and other 

factors, including culture, race, and ethnicity. NIDRR also nurtures methodological work 

that addresses identified gaps in data, such as the sparse measurement of the interface 

between individual and environment.

NIDRR Program Directory FY 2012 - Disability Demographics

5-3

Rehabilitation Research and Training Centers (RRTCs) 

New Jersey 

Rehabilitation Research and Training Center on Disability Statistics and Demographics 

Kessler Foundation 

Kessler Foundation Research Center 

300 Executive Drive, Suite 70 

West Orange, NY 07052 

disability.statistics@unh.edu 

disabilitycompendium.org 

Principal Investigator: Elizabeth Cardoso, PhD; Andrew Houtenville, PhD; John O’Neill, PhD; 

973/324-8387 

Public Contact: Andrew Houtenville, PhD 866/538-9521; Fax: 603/862-0555 

Project Number: H133B120006 

Start Date: October 01, 2012 

Length: 12 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 12 $850,000

Abstract: The Rehabilitation Research and Training Center on Disability Statistics and Demographics 

(StatsRRTC) facilitates evidence-based decision making in many different service and policy arenas to 

benefit persons with disabilities, leading to improved education and employment outcomes. StatsRRTC 

is a collaborative effort that brings together the lead investigators from three current RRTCs: the 

StatsRRTC, Employment Service System RRTC, and Employment Policy RRTC; and partners them 

with leaders in the disability advocacy community from the American Association of People with Disabilities and leaders in vocational rehabilitation from the Council of State Administrators of Vocational 

Rehabilitation. Project activities include: (1) producing a set of guides to and meta-analyses of existing 

survey and administrative data sources; (2) conducting experiments to test alternative survey methods; 

(3) expanding and distributing the Annual Disability Statistics Compendium; (4) expanding and revising the Source Guide for Surveying People with Disabilities; (5) providing an information and referral 

technical assistance service; (6) providing stylized statistical estimates and methodological consulting for key stakeholders as a follow-up to outreach and training activities; and (7) conducting training 

designed to build capacity among consumers and within the vocational rehabilitation system and other 

support services systems related to data collection and analysis, secondary data analysis, and reporting 

processes. Project goals include: improving the knowledge of and access to existing data; generating the 

knowledge needed to improve future disability data collection; and strengthening connections between 

the data from and regarding respondents, researchers, and decision makers. 
NIDRR Program Directory FY 2012 - Disability Demographics

5-4

Field Initiated Projects (FIPs) 

Colorado 

Impact of the Great Recession and Its Aftermath on Public Spending and Services for Persons 

with Disabilities: A 50 State Study, FY 2009-13 

University of Colorado Denver 

Coleman Institute for Cognitive Disabilities 

3825 Iris Avenue, Suite 200 

Boulder, CO 80301 

braddock@cu.edu 

Principal Investigator: David L. Braddock, PhD 

Public Contact: 303/492-0639; Fax: 303/735-5643 

Project Number: H133G120010 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 12 $200,000; FY 13 $200,000; FY 14 $200,000

Abstract: This project is a comprehensive longitudinal study of the characteristics, trends, and determinants of public spending for disability programs in the United States. The study analyzes disability 

services and spending trends in the 50 states and DC in four broad domains: income maintenance, 

general health care, long-term care, and special education services. The study develops and maintains 

a comprehensive state-by-state database on public disability spending and services during the17-year 

period encompassing fiscal years 1997-2013. The project also responds in a timely fashion to data dissemination requests from state and federal legislators and their staffs, executive officials in Washington 

and the states, and to state and national disability-related advocacy organizations, self-advocates, and 

researchers. The project provides information and technical assistance to consumers with disabilities, 

state governments, and service providers. Collaborators for dissemination and technical assistance include the Denver-based National Conference of State Legislatures (NCSL), the Washington, DC-based 

Consortium for Citizens with Disabilities (CCD) (a network with over 100 member organizations), and 

ADAPT, which along with project staff, provide internet-based dissemination, and produce and distribute publications with detailed state-by-state financial and programmatic data. 
NIDRR Program Directory FY 2012 - Disability Demographics

5-5

Field Initiated Projects (FIPs) 

Maryland 

Health Care Disparities in Access and Utilization among Individuals with Disabilities 

University of Maryland at Baltimore County 

Maryland Institute for Policy Analysis and Research 

1000 Hilltop Circle

Public Policy Building 

Baltimore, MD 21250 

nanmille@umbc.edu 

Principal Investigator: Nancy Miller, PhD 

Public Contact: 410/455-3889; Fax: 410/555-1184 

Project Number: H133G090133 

Start Date: October 01, 2009 

Length: 36 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 09 $194,848; FY 10 $196,063; FY 11 $199,232; FY 12 (No-cost extension 

through 9/30/13)

Abstract: This project analyzes survey data to identify health disparities among individuals with disabilities. The project combines survey data from the National Health Interview Survey and the Medical Expenditure Panel Survey, pooling six years of data to enhance sample size. Through multivariate 

analyses, it examines two system-level factors (health insurance and patient/provider interactions), and 

three individual level factors (race and ethnicity, socioeconomic status, and disability type), and their 

contribution to health care disparities. The measures of access and utilization mirror those included in 

the series of Agency for Healthcare Research and Quality National Healthcare Disparities reports. Researchers identify “doubly underserved” individuals: subpopulations with disabilities that are disparately 

impacted by system and individual characteristics. The project also examines the extent to which system 

and individual level factors differentially affect individuals with disabilities, relative to individuals without disabilities. 
NIDRR Program Directory FY 2012 - Disability Demographics

5-6

Field Initiated Projects (FIPs) 

Maryland 

Impacts and State Utilization of HCBS Waiver Services for Families and Children with Autism 

Towson University

College of Liberal Arts Building, Suite 2210 

Towson, MD 21252 

keskow@towson.edu 

www.towson.edu/fmst 

Principal Investigator: Karen Eskow, PhD 410/704-2238 

Public Contact: Gretchen Armington 410/704-5851; Fax: 410/704-3612 

Project Number: H133G120030 

Start Date: October 01, 2012 

Length: 36 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 12 $200,000; FY 13 $199,999; FY 14 $200,000

Abstract: This project explores impacts of implementation of Medicaid Home and Community Based 

(HCBS) Waiver initiatives in support of children and families who experience autism. In a two-pronged 

approach, the project studies state policy makers and factors contributing to or impeding implementation 

of HCBS autism waivers at the state level, and studies families and youth in a state with an autism waiver in place -- Maryland -- to learn more about service needs, impacts of the waiver on children/youth and 

families, and service configurations that may make the most difference to children with autism and their 

families at younger ages as compared to transition ages. In Study One, Phase 1 involves in-depth qualitative interviews with policy makers in four states concerning perspectives about facilitators and barriers to implementing HCBS waivers in general and autism waivers in particular. These results are used 

to develop a national survey to be distributed in Phase 2 to all 50 states. Study Two involves in-depth 

qualitative interviews with 48 Waiver and Registry families to probe their perspectives about their child 

and family needs, impacts of the child’s disability, concerns about approaching transitions, and impacts 

of the services they are receiving. The results of this study inform Phase 2 of Study Two (as well as any 

additional issues identified in the national survey of states from Study One), which is a statewide survey 

distributed to families receiving Waiver services and on the Registry list. 
Contents

Rehabilitation Research and Training Centers (RRTCs) ......................................................................3

Disability and Rehabilitation Research Projects ...................................................................................4

Field Initiated Projects (FIPs) .............................................................................................................12

ADA Technical Assistance Projects ....................................................................................................13

Utilization Projects ..............................................................................................................................15

Knowledge Translation

For NIDRR, knowledge translation (KT) encompasses the multidimensional, active 

process of ensuring that new knowledge gained through the course of research ultimately 

improves the lives of people with disabilities and furthers their participation in society. 

KT involves not only knowledge validation and dissemination but also the transfer of 

technology, particularly products and devices, from the research and development setting 

to the commercial marketplace to make possible widespread utilization of the products or 

devices. NIDRR funds a number of KT projects focusing on different content areas, not 

only to assist NIDRR grantees in their knowledge translation efforts through technical 

assistance, training, and other activities, but also to generate new knowledge and 

understanding of KT in disability and rehabilitation context.

NIDRR Program Directory FY 2012 - Knowledge Translation

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Rehabilitation Research and Training Centers (RRTCs) 

Illinois 

Rehabilitation Research and Training Center on Improving Measurement of Medical 

Rehabilitation Outcomes 

Rehabilitation Institute of Chicago (RIC) 

Center for Rehabilitation Outcomes Research 

345 East Superior Street 

Chicago, IL 60611-2654 

a-heinemann@northwestern.edu 

www.ric.org/research/centers/cror/ 

Principal Investigator: Allen W. Heinemann, PhD 

Public Contact: 312/238-2802; Fax: 312/238-4572 

Project Number: H133B090024 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 09 850,000; FY 10 850,000; FY 11 850,000; FY 12 850,000; FY 13 850,000

Abstract: This project focuses on combining innovative measurement, data collection, and reporting 

methods with practical concerns for usability, implementation, and multi-user communication. Measurement of the cognitive and environmental factors affecting participation is hampered by instruments 

that are not tailored appropriately to persons with disabilities or for use in time-pressed clinical settings. 

This project focuses on persons with traumatic brain injury, spinal cord injury, and stroke because these 

groups experience complex cognitive, physical, sensory, and emotional impairments that limit access to 

and use of standardized test protocols. Specific project goals include: (1) increasing the accessibility of 

measures of cognitive function for use in rehabilitation settings so that consumers’ needs and outcomes 

are documented; (2) examining the reliability, validity, and sensitivity of measures of cognitive function 

for persons with disabilities within major item banks including the NIH Toolbox, the Executive Function 

Performance Test, NeuroQOL, TBI-QOL, SCI-QOL, and SCI-CAT projects; (3) evaluating and refining 

measures of barriers and facilitators of community participation enabling better evaluation of the outcomes of rehabilitation services; (4) utilizing the large set of data to examine the validity of the cognitive items on the Continuity and Record Evaluation Tool, a standardized patient assessment instrument 

developed by the Centers for Medicare and Medicaid Services; and (5) evaluating the extent to which 

the International Classification of Functioning, Disability, and Health (ICF) represents disablement 

characteristics by mapping instruments collected as part of project activities to concepts within the ICF. 

This RRTC conducts research; hosts forums for discussion; publishes in the rehabilitation science, health 

policy, and consumer literature; trains new researchers in rehabilitation-focused health services research; 

and disseminates information to diverse scientific, clinician, consumer and policymaker audiences. 
NIDRR Program Directory FY 2012 - Knowledge Translation

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Disability and Rehabilitation Research Projects 

Alabama 

National Spinal Cord Injury Statistical Center (NSCISC) 

University of Alabama at Birmingham 

SRC 515; 1717 Sixth Avenue, South 

Birmingham, AL 35249-7330 

nscisc@uab.edu 

www.nscisc.uab.edu 

Principal Investigator: Yuying Chen, MD, PhD 205/934-3320 

Public Contact: Vicki Farris 205/934-5049; Fax: 205/934-2709 

Project Number: H133A060039 

Start Date: October 01, 2006 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 06 625,000; FY 07 625,000; FY 08 625,000; FY 09 625,000; FY 10 625,000; FY 

11 (No-cost extension through 9/30/2012)

Abstract: The National Spinal Cord Injury Statistical Center (NSCISC) at the University of Alabama 

at Birmingham has been the home of the National Spinal Cord Injury Model Systems (SCIMS) Data 

Center since 1983. The NSCISC continues to expand its current activities and implement innovative new 

tasks to accomplish the following goals: (1) maintenance of the SCIMS database, (2) high-quality data 

in the SCIMS database, (3) high-quality data collected from database participants of all racial/ethnic 

backgrounds, (4) rigorous SCIMS database research conducted by all investigators, (5) enhanced continuity of the SCIMS database, and (6) improved database operations through collaboration. In particular, 

the project takes advantage of the latest Internet and centralized database technology to rewrite the database software from its current distributed format to a centralized web-based system, which significantly 

improves the capability to manage new data module projects, increases cost-efficiency, improves quality 

control, and enhances data security. To promote best research practices across the SCIMS, the Center 

establishes an annual online comprehensive training curriculum for SCIMS data collectors, conducts 

evaluative site visits, publishes a guide regarding proper use of the database, and refines standards on 

culturally appropriate SCI research. The project includes subcontracts with formerly-funded SCIMS 

centers to continue data collection for patients previously enrolled in their research. The Center continues to benefit from the active involvement of persons with SCI and productive partnerships with other 

NIDRR-funded centers in the design, implementation, and evaluation of these activities. 
NIDRR Program Directory FY 2012 - Knowledge Translation

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Disability and Rehabilitation Research Projects 

Alabama 

National Spinal Cord Injury Statistical Center 

University of Alabama at Birmingham 

1720 2nd Avenue South - SRC 515 

Birmingham, AL 35249-0113 

nscisc@uab.edu 

www.nscisc.uab.edu 

Principal Investigator: Yuying Chen, MD, PhD 205/934-3320 

Public Contact: Phil Klebine, MA 205/934-3342; Fax: 205/975-4691 

Project Number: H133A110002 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 11 625,000; FY 12 625,000; FY 13 625,000; FY 14 625,000; FY 15 625,000

Abstract: With the ultimate goal of advancing knowledge of spinal cord injury (SCI) outcomes, the 

National Spinal Cord Injury Statistical Center (NSCISC) provides resources and services that support 

the longitudinal Spinal Cord Injury Model System (SCIMS) Database, ensure high-quality data, and promote rigorous research. Project activities are planned with several target populations in mind: individuals with SCI, SCIMS centers, researchers who intend to use the database, and any person who needs SCI 

statistics. Web-based data management system is upgraded with advanced functionality and user-friendly features to enhance security, quality control, and data retrieval/reporting as well as support SCIMS 

module projects and research. High-quality reliable data are ensured through utilization of a network of 

experts, refinement of the Standard Operating Procedures, implementation of a comprehensive certification program for data collectors, monitoring data quality and conducting site visits, enforcement of onsite quality assurance procedures, training, and technical assistance. A series of analyses are conducted 

to identify underlying factors that contribute to racial/ethnic differences in enrollment, retention, and responsiveness to interview questions, along with continued assessment of intercultural competence status 

and needs as a guide for the development of training materials. To increase the quantity and quality of 

SCIMS Database research, this project has four objectives: (1) intramural and collaborative research; (2) 

internship, award, and other training programs; (3) development of education and information resources 

for investigators; and (4) individual consultation and technical assistance. To enhance SCIMS Database 

continuity, two previously established mechanisms (subcontract and centralized data collection) are utilized for continued collection of follow-up data from unfunded SCIMS centers, and procedures are enacted to ensure high-quality reliable data. Moreover, this project implements an evaluation plan designed 

to assess the quality and quantity of project outputs with the impacts of advancing knowledge in SCI 

rehabilitation outcomes and facilitating changes in policy and clinical practice through SCIMS research. 
NIDRR Program Directory FY 2012 - Knowledge Translation

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Disability and Rehabilitation Research Projects 

District of Columbia 

Model Systems Knowledge Translation Center (MSKTC) 

American Institutes for Research 

1000 Thomas Jefferson Street, NW 

Washington, DC 20007 

ccai@air.org; coverton@air.org 

www.msktc.org 

Principal Investigator: Steven Garfinkel, PhD; N. Lynn Gerber, MD; 919/918-2306; 703/993-1940 

Public Contact: Cindy Cai, PhD; Cynthia Overton, PhD; 202/403-6929; 202/403-5058; Fax: 202/403-

5454 

Project Number: H133A110004 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 11 800,000; FY 12 799,999; FY 13 799,999; FY 14 800,000; FY 15 799,999

Abstract: The mission of the Model Systems Knowledge Translation Center (MSKTC) is to enhance 

the rigor and relevance of the model systems research and to communicate this research effectively 

to all potential audiences. This project has three goals: (1) enhanced understanding of the quality and 

relevance of the findings of NIDRR’s Spinal Cord Injury (SCI), Traumatic Brain Injury (TBI), and Burn 

Model Systems (MS) programs; (2) enhanced knowledge of advances in SCI, TBI, and Burn research 

among consumers, clinicians, and other end users of such information; and (3) the centralization of SCI, 

TBI, and Burn Model Systems resources for effective and uniform dissemination and technical assistance. These goals serve to guide the Center’s strategies and activities to create an impact on the target 

population, including the MS grantees and other researchers as well as the broader audience of people 

with disabilities and their families, clinicians and practitioners, and policymakers and advocates through 

services in three areas. Service Area 1 uses a systematic approach to identify, evaluate, and synthesize 

evidence-based research findings. Tasks under Service Area 1 include: (1) establishing and maintaining a 

Technical Review Committee, (2) establishing standards for systematic reviews, (3) conducting reviews 

and publishing results, and (4) conducting quick turnaround reviews. Service Area 2 offers a strategic 

approach in knowledge translation (KT) support to grantees. Tasks under Service Area 2 include: (1) 

KT technical assistance and training, (2) communities of practice focused on each injury area among all 

audiences, and (3) conducting consumer needs research. Service Area 3 creates a central location to host 

all the KT resources and uses a multifaceted approach to knowledge dissemination, in order to ensure 

that audiences have timely access to relevant information that (1) help facilitate the knowledge translation process; (2) inform decisions surrounding rehabilitation options in the areas of SCI, TBI, and Burn; 

and (3) inform the professional practices to key audiences. Tasks under Service Area 2 include: (1) web 

site redesign and maintenance, (2) MSKTC multimedia development, (3) an online dissemination toolkit 

development, and (4) outreach and dissemination. 
NIDRR Program Directory FY 2012 - Knowledge Translation

6-7

Disability and Rehabilitation Research Projects 

New York 

Center on Knowledge Translation for Technology Transfer 

University at Buffalo

The State University of New York

Center for Assistive Technology 

100 Sylvan Parkway, Suite 400 

Amherst, NY 14228 

joelane@buffalo.edu 

kt4tt.buffalo.edu 

Principal Investigator: Joseph Lane 716/204-8606, ext. 211 

Public Contact: 716/204-8606 (V); 877/742-4141 (V); 716/204-8606 (TTY); Fax: 716/204-8610 

Project Number: H133A080050 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 08 999,998; FY 09 999,994; FY 10 999,997; FY 11 999,997; FY 12 999,997

Abstract: The objective of this project is to study and apply the theory and practice of knowledge translation (KT) to the knowledge outputs of NIDRR technology grantees. Goals of this project are improved 

understanding of barriers to accomplishing KT for technology transfer (TT) and carriers to overcome 

them; advanced knowledge of the best models, methods, and measures for accomplishing KT for TT; 

and increased utilization of the validated best practices for KT for TT by the NIDRR grantees. Research 

Project 1 synthesizes current knowledge about KT theory and practice related to accomplishing technology transfer outcomes; establishes parallel models of practices for both knowledge translation and 

technology transfer; and creates an operational framework for the Knowledge To Action (KTA) model, 

by applying the technology transfer methods and measures promulgated by the Product Development 

Manager’s Association, to create counterparts in knowledge translation. Research Project 2 establishes 

parameters for defining new knowledge as an innovation, and establishes Grantee Innovation Profiles 

for participating RERC and SBIR grantees in wheeled mobility, sensory disability, and environmental 

access technology areas; and interviews representatives for the six categories of knowledge users (i.e., 

researchers, manufacturers, clinicians, policy makers, consumers, and brokers), to establish Knowledge 

Value Profiles for each user category. Research Project 3 conducts a series of six intervention studies in 

the three technology areas. They communicate a series of randomly selected innovations to the six user 

categories, either through standard knowledge dissemination practices, or through knowledge translation practices applied through the operational KTA model. Development Project 1 conducts a series of 

at least six technology transfer demonstration projects, working in collaboration with corporate partners, 

while Rehabilitation Engineering Research Center and/or Small Business Innovation Research grantees interact as participant observers. Development Project 2 creates a knowledgebase consisting of a 

data base structure customized for access by each category of knowledge user based on their respective 

value systems, along with all Disability and Rehabilitation Research Projects training materials publicly 

available in accessible and usable forms. A utilization project encourages NIDRR grantees to use the 

DRRP’s materials, and implement the operational KTA model through coordinated dissemination, train-
NIDRR Program Directory FY 2012 - Knowledge Translation

6-8

ing, and technical assistance projects. This project also promotes the diffusion and utilization of innovative research-based knowledge by targeting each of the six categories of knowledge users with a parallel 

coordinated program of the same multiple methods. 
NIDRR Program Directory FY 2012 - Knowledge Translation

6-9

Disability and Rehabilitation Research Projects 

New York 

Center for International Rehabilitation Research Information & Exchange (CIRRIE-3) 

The Research Foundation of SUNY on behalf of the University at Buffalo 

Center for Assistive Technology 

515 Kimball Tower 

Buffalo, NY 14214 

ub-cirrie@buffalo.edu 

cirrie.buffalo.edu 

Principal Investigator: John Stone, PhD 

Public Contact: 716/829-6739; Fax: 716/829-3217 

Project Number: H133A100021 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 10 399,994; FY 11 399,994; FY 12 399,992; FY 13 399,992; FY 14 399,995

Abstract: This project establishes a comprehensive program to identify, organize, and disseminate international research and development knowledge relevant to the disability and rehabilitation community 

in the U.S. The Center for International Rehabilitation Research Information and Exchange (CIRRIE-3) 

includes four coordinated sets of activities: database, dissemination, exchange, and cultural competence 

education. CIRRIE-3 continues to expand its Database of International Rehabilitation Research. In this 

cycle it is adding features making it comparable to major commercial databases. CIRRIE-3 continues to 

disseminate its previously created international information resources while developing new resources, 

including bibliographies on topics of interest to NIDRR-funded projects; databases of cross-walks of rehabilitation instruments to the ICF and resources on universal design; and access to international literature on development methods for assistive technology. Additionally, CIRRIE-3 is developing a comparative profile of US and international research in 50 topic areas and conducting a conference in 2011 on 

the WHO World Report on Disability and Rehabilitation. CIRRIE-3 is conducting a program for international exchanges of research and development personnel from NIDRR-funded projects and counterparts in other countries. Approximately 60 exchanges are occurring over the 5-year cycle. The focus of 

the program is on building productive R&D collaborations. CIRRIE-3 continues to develop educational 

resources for use in training future rehabilitation professionals to work effectively with persons with disabilities who were born in other countries. CIRRIE-3 is developing simulations involving cross-cultural 

rehabilitation with high fidelity manikins and standardized patients trained to mirror foreign-born rehabilitation clients. The CIRRIE-3 program is global in scope and encompasses all of the NIDRR domains 

of disability and rehabilitation research and development. 
NIDRR Program Directory FY 2012 - Knowledge Translation

6-10

Disability and Rehabilitation Research Projects 

Texas 

SEDL Center on Knowledge Translation for Employment Research 

SEDL 

4700 Mueller Boulevard 

Austin, TX 78723 

tracy.hoes@sedl.org 

www.kter.org 

Principal Investigator: John Westbrook, PhD 

Public Contact: 512/391-6517; Fax: 512/476-2286 

Project Number: H133A100026 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 10 650,000; FY 11 650,000; FY 12 650,000; FY 13 650,000; FY 14 650,000

Abstract: The Center on Knowledge Translation for Employment Research has a dual purpose: (1) 

assessing, describing, and informing relevant stakeholders about the current research base related to improving employment outcomes among individuals with disabilities; and (2) exploring and testing knowledge translation strategies that can increase the appropriate use of that research among four key audiences: individuals with disabilities, employers, policy makers, and vocational rehabilitation practitioners. To 

address those purposes, this project (1) reviews the research literature to identify evidence-based practices that can be used to improve employment outcomes for individuals with disabilities; (2) identifies 

gaps that need to be addressed in future research; (3) widely disseminates project findings; (4) conducts 

survey and interview research to explore factors that either impede or support the use of research findings among the four target audiences; (4) conducts several research studies to test ways of helping target 

audiences to access and use the evidence-based practices identified (i.e., testing knowledge translation 

strategies); and (5) provides training and technical assistance to researchers so that they can incorporate 

effective knowledge translation strategies into their research, development, and dissemination activities. 

This is a collaborative project with SEDL and Virginia Commonwealth University. 
NIDRR Program Directory FY 2012 - Knowledge Translation

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Disability and Rehabilitation Research Projects 

Texas 

SEDL’s Center on Knowledge Translation for Disability and Rehabilitation Research 

SEDL 

4700 Mueller Boulevard 

Austin, TX 78723 

tracy.hoes@sedl.org 

www.ncddr.org 

Principal Investigator: John Westbrook, PhD 512/391-6565 

Public Contact: 512/391-6517; Fax: 512/476-2286 

Project Number: H133A120012 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 12 750,000; FY 13 750,000; FY 14 750,000; FY 15 750,000; FY 16 750,000

Abstract: This project serves as a primary knowledge translation (KT) resource for NIDRR-funded 

researchers, developers, and KT brokers, addressing the need for access to and skills in implementing 

best practices, undertaking systematic reviews and other high-quality syntheses of research, and translating research findings and using them to make critical decisions. To address these needs, the Center 

provides an array of training, dissemination, utilization, and technical assistance activities, including: 

supports for the production of high quality systematic reviews and research syntheses, including longterm, individualized technical assistance; tools and training to assist in extracting data, assessing quality, and using evidence from systematic reviews in identifying research gaps and formulating research 

questions; training and assistance to help NIDRR grantees meet the challenges of evidence standards; 

training and assistance addressing KT planning, including use of planning templates and tools; supports 

for NIDRR grantees in the development of evidence-based knowledge products; establishment of a 

Consumer Review Panel to provide guidance in ensuring that knowledge products and KT strategies are 

relevant and accessible to knowledge users; ready access to an array of KT strategies, with information 

about evidence of their effectiveness, and support for their use among NIDRR grantees; facilitation of 

collaborative work and information-sharing among NIDRR grantees, through working groups and communities of practice; for knowledge users, awareness of and ready access to evidence-based knowledge 

through accessible Web-based resources and social media; tools for knowledge users that facilitate the 

assessment of quality of systematic reviews and research syntheses, and the identification and utilization 

of high quality research evidence; and strategies to help NIDRR grantees engage knowledge users in all 

phases of KT, from seeking and creating knowledge through its application. 
NIDRR Program Directory FY 2012 - Knowledge Translation

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Field Initiated Projects (FIPs) 

Illinois 

Development of Quality Measures for Post-Stroke Rehabilitation 

Rehabilitation Institute of Chicago (RIC) 

345 East Superior Street, Onterie Building 

Chicago, IL 60611-2654 

adeutsch@ric.org 

Principal Investigator: Anne Deutsch, RN, PhD, CRRN 

Public Contact: 312/238-2826; Fax: 312/503-2936 

Project Number: H133G100182 

Start Date: October 01, 2010 

Length: 36 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 10 199,691; FY 11 199,973; FY 12 175,751

Abstract: This research project identifies quality measures appropriate for rehabilitation patients recovering from a stroke that meet the criteria established by the National Quality Forum. Study objectives 

include: (1) identifying candidate quality measures for post-stroke rehabilitation that are currently used 

or endorsed for use; (2) evaluating the importance, scientific acceptability, usability, and feasibility of 

candidate quality measures using National Quality Forum criteria; and (3) disseminating quality measures to stakeholders including the Centers for Medicare and Medicaid Services, private payers, and 

consumer organizations. The project addresses four research questions focusing on patients with stroke 

undergoing medical rehabilitation care: (1) what quality measures are used by rehabilitation providers; 

(2) what quality measures are endorsed by the National Quality Forum that may apply to post-stroke 

rehabilitation patients; (3) which of these quality measures meet the National Quality Forum criteria of 

importance, scientific acceptability, usability, and feasibility for patients with post-stroke rehabilitation; 

and (4) what research questions and issues need to be addressed within the next three to five years to 

advance quality measures? By creating standardized quality measures in which rehabilitation programs 

report quality; consumers, caregivers, and clinicians can select programs that optimize their health and 

function. 
NIDRR Program Directory FY 2012 - Knowledge Translation

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ADA Technical Assistance Projects 

Washington 

ADA Network Knowledge Translation Center 

University of Washington 

1959 NE Pacific Street, HSB BB-919

Box 356490 

Seattle, WA 98195 

adakt@uw.edu 

adata.org 

Principal Investigator: Kurt Johnson, PhD 

Public Contact: 206/543-3677; Fax: 206/543-4779 

Project Number: H133A110014 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 11 850,000; FY 12 850,000; FY 13 850,000; FY 14 850,000; FY 15 850,000

Abstract: The purpose of the Americans with Disabilities Act (ADA) Network Knowledge Translation Center (ADA Network-KTC) is to ensure that information and products developed and identified 

through the ten ADA regional centers are of high quality, based on the best available research evidence, 

and are deployed effectively to multiple key stakeholders; and to develop processes and technology to 

facilitate highly collaborative and efficient progress to accomplishing these goals. Stakeholders include: 

employers, researchers, educators, policy makers, staff of state and local government agencies, individuals with disabilities, family members, and project staff in the ADA regional centers and other related 

federal and privately-funded organizations. To achieve this purpose the ADA Network-KT Center has 

four project goals. Goal 1: Optimize the efficiency and impact of the ADA National Network’s training, 

technical assistance, and information dissemination by: (1) maintaining and further developing the ADA 

National Network’s website and ADA Document Portal, (2) developing an online system to enable the 

ADA Regional Centers to share training and technical assistance materials, (3) facilitating joint development of ADA products by the ADA Regional Centers to maximize resources and avoid duplication, and 

(4) organizing and providing logistical and financial support for annual meetings of the ADA Regional 

Centers. Goal 2: Increase the use of available ADA-related research findings to inform behavior, practices, or policies that improve equal access in society for individuals with disabilities by: (1) identifying 

topics of importance to ADA stakeholders in collaboration with the ADA Centers and other key informants and by conducting systematic reviews of the evidence; (2) identifying topics for future research 

(knowledge gaps) to help individuals understand their rights and responsibilities under ADA; and (3) 

synthesizing information from systematic reviews, research publications, and expert consensus to develop stakeholder materials. Goal 3: Increase awareness and utilization of ADA-related research findings by appropriate ADA stakeholder groups by: (1) collaborating with the ADA Centers on developing 

individual KT plans that support a national KT implementation plan for the ADA National Network, and 

(2) coordinating and hosting one ADA research conference in year 5. Goal 4: Improve understanding 

of ADA stakeholders’ need for and receipt of ADA Network Services over time, including services to 

address emerging issues related to compliance with ADA requirements by: (1) operating and maintain-
NIDRR Program Directory FY 2012 - Knowledge Translation

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ing the outcome measurement system, (2) collaborating with NIDRR and the ADA Regional Centers to 

improve usability and accessibility, (3) developing a data sharing plan to facilitate program improvement 

and research, (4) monitoring data quality and providing training and technical assistance on use of the 

database, and (5) development and implementation of a system for measuring and tracking outcomes of 

the ADA National Network. 
NIDRR Program Directory FY 2012 - Knowledge Translation

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Utilization Projects 

Maryland 

National Rehabilitation Information Center (NARIC) 

HeiTech Services, Inc. 

8400 Corporate Drive, Suite 500 

Landover, MD 20785 

naricinfo@heitechservices.com 

www.naric.com 

Principal Investigator: Mark X. Odum 

Public Contact: Information Specialists 800/346-2742 (V); 301/459-5984 (TTY); 301/459-5900 (V); 

Fax: 301/459-4263 

Project Number: ED-OSE-10-0074 

Start Date: August 01, 2010 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 10 2,162,839; FY 11 1,713,263; FY 12 1,886,654; FY 13 1,916,970; FY 14 

2,001,740

Abstract: The National Rehabilitation Information Center (NARIC) maintains a research library of 

more than 65,000 documents and responds to a wide range of information requests, providing facts and 

referral, database searches, and document delivery. Through telephone and online information referral, 

NARIC disseminates information gathered from NIDRR-funded projects, other federal programs, and 

from journals, periodicals, newsletters, and multimedia. NARIC maintains REHABDATA, a bibliographic database on rehabilitation and disability issues, both in-house and online. Users are served in 

English and Spanish by telephone, mail, electronic communications, or in person. Current tasks include 

a crosswalk between the REHABDATA Thesaurus and the International Classification of Function 

(ICF); acquisition of digital media; maintaining and expanding a digital archive of original research 

documents; and knowledge translation activities in support of NIDRR’s mission including citation 

analysis, long term project tracking, and promotion of NIDRR sponsored research. NARIC also prepares 

and publishes the annual NIDRR Program Directory, available in database format from NARIC’s web 

site, and several regular publications highlighting NIDRR research. 
NIDRR Program Directory FY 2012 - Knowledge Translation

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Utilization Projects 

Maryland 

AbleData 

ICF International 

8630 Fenton Street, Suite 930 

Silver Spring, MD 20910 

abledata@macrointernational.com 

www.abledata.com 

Principal Investigator: Katherine Belknap 301/608-8998, ext. 105 

Public Contact: 800/227-0216 (V); 301/608-8998 (V); 301/608-8912 (TTY); Fax: 301/608-8958 

Project Number: ED-04-CO-0018/0007 

Start Date: September 09, 2008 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 08 776,743; FY 09 752,403; FY 10 771,763; FY 11 809,215; FY 12 835,230

Abstract: This project maintains and expands the AbleData database of assistive technology, develops 

information and referral services that are responsive to the special technology product needs of consumers and professionals, and provides data to major dissemination points to ensure wide distribution and 

availability of the information to all who need it. The AbleData database contains information on more 

than 40,000 commercially produced and custom-made assistive devices. All of the project’s resources 

are available free of charge on its website. Requests for information are answered via telephone, mail, 

electronic communications, or in person.
ADA National Network Projects

The Americans with Disabilities Act (ADA) opens more opportunities for persons 

with disabilities. It also places certain responsibilities on employers, transit and 

communication systems, state and local governments, and public accommodations. 

To assist covered parties to understand and comply with the ADA, NIDRR has funded 

a network of grantees to provide information, training, and technical assistance to 

businesses and agencies with duties and responsibilities under the ADA.

Contents

ADA Technical Assistance Projects............................................................................... 3

NIDRR Program Directory FY 2012 - ADA Technical Assistance Projects

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ADA Technical Assistance Projects 

Region I - CT, ME, MA, NH, RI, and VT 

New England ADA National Network Regional Center - Region I 

Institute for Human Centered Design, Inc. 

200 Portland Street, First Floor 

Boston, MA 02114 

adainfo@newenglandada.org 

www.NewEnglandADA.org 

Principal Investigator: Valerie Fletcher 617/695-1225, ext. 226 

Public Contact: Oce Harrison, EdD, Project Director 800/949-4232 (V/TTY in CT, ME, MA, NH, RI, 

and VT), 617/695-1225 (V/TTY); Fax: 617/482-8099 

Project Number: H133A110028 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 11 $1,000,000; FY 12 $1,000,000; FY 13 $1,000,000; FY 14 $1,000,000; FY 15 

$1,000,000

Abstract: The New England ADA Center meets the growing demands and complex challenges of providing outreach, training, technical assistance, information dissemination, and capacity building through 

Americans with Disabilities Act (ADA) network services. These services are tailored to meet the needs 

and preferences of people with rights and responsibilities under the ADA. Services include information 

and training for individual, business, and government needs at the local, regional, and national levels. To 

increase capacity building among priority audiences the Center expands ADA network services with the 

following initiatives beyond the core services: (1) a set of new digital and interactive information tools 

that integrate recent ADA changes (Title II Action Guide, Title III Action Guide); (2) five new distance 

learning courses in the format of web-based multi-media courses; and (3) new, in-person training packages related to accessible information and communication technology. The center addresses persistent 

gaps in the field in an collaboration with the IHCD Studio that includes: (1) field-based training for cities 

and towns, (2) an eight-unit comprehensive course on ADA accessible design for architects and designers, and (3) a hands-on training program for people with disabilities and other accessibility advocates on 

how to read an architectural drawing to check for compliance. 
NIDRR Program Directory FY 2012 - ADA Technical Assistance Projects

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ADA Technical Assistance Projects 

Region II - NJ, NY, PR, and VI 

Northeast ADA National Network Regional Center - Region II 

Cornell University 

Office of Sponsored Programs 

201 Dolgen Hall 

Ithaca, NY 14853-3901 

northeastada@cornell.edu 

www.northeastada.org 

Principal Investigator: Wendy Strobel Gower, Project Director 

Public Contact: 800/949-4232 (V/TTY in NY, NJ, PR, and VI); 607/255-6751; Fax: 607/255-2763 

Project Number: H133A110020 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 11 $1,112,165; FY 12 $1,112,165; FY 13 $1,112,165; FY 14 $1,112,165; FY 15 

$1,112,165

Abstract: The Northeast ADA Center at Cornell University provides a series of training programs, an 

extensive set of dissemination activities and ongoing, on-demand technical assistance to inform Americans with Disabilities Act (ADA) stakeholders in federal Region II (New York, New Jersey, Puerto Rico, 

and the U.S. Virgin Islands), of their rights and responsibilities under all titles of this law. The center 

provides a comprehensive series of five training, four dissemination activities, three technical assistance 

components, and three collaboration projects. Additionally the center conducts rigorous training with a 

network of new and advanced trainers; develops an online ADA-focused curriculum; develops online 

tools for mid-level managers and supervisors; educates on the ADA, and new DOJ and EEOC regulations; addresses emerging issues including veterans, emergency management, and IT accessibility; and 

offers continued on-demand training. Information dissemination via the web, e-mail, and phone complements the above training activities, while also focusing on maximizing outreach to diverse stakeholders. 

The goal of this center is to expand the availability and accessibility of information on the ADA, while 

building the capacity of networks of stakeholders to make use of this information with a long-term goal 

of increasing inclusion and integration of individuals with disabilities in all economic and social areas of 

everyday life. 
NIDRR Program Directory FY 2012 - ADA Technical Assistance Projects

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ADA Technical Assistance Projects 

Region III - DC, DE, MD, PA, VA, and WV 

Mid-Atlantic ADA National Network Regional Center - Region III 

TransCen, Inc. 

451 Hungerford Drive, Suite 700 

Rockville, MD 20850-4151 

adainfo@transcen.org 

www.adainfo.org 

Principal Investigator: Richard G. Luecking, PhD 301/424-2002 

Public Contact: Marian S. Vessels, Project Director 800/949-4232 (V/TTY, in DC, DE, MD, PA, VA, 

and WV); 301/217-0124 (V/TTY); Fax: 301/217-0754 

Project Number: H133A110017 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 11 $1,000,000; FY 12 $1,000,000; FY 13 $1,000,000; FY 14 $1,000,000; FY 15 

$1,000,000

Abstract: The Mid-Atlantic ADA Center (Region III) identifies and implements a variety of approaches 

designed to assist individuals with disabilities in gaining improved access to employment and other areas of community life. The Mid-Atlantic ADA Center implements an operational plan of specific objectives and tasks associated with four major project goals: (1) improving the understanding by individuals 

and entities of their rights and responsibilities under the Americans with Disabilities Act (ADA); (2) 

building the capacity of local and state entities to provide training, technical assistance, and information 

dissemination on ADA related topics; (3) improving employment and other life outcomes of individuals with disabilities; and (4) increasing access by individuals with disabilities to lodging, restaurant, and 

other services from, as well as employment opportunities within, the hospitality industry. Project activities include: (1) training, technical assistance, and information dissemination to general ADA constituencies on all titles of the act; (2) outreach to individual statewide coalitions, AT consortiums, and regional 

training network to increase the capacity of other organizations to provide locally focused training, 

technical assistance, and dissemination of all titles of the ADA; (3) identification of problematic areas 

where research and informational campaigns might aid in the avoidance of, or solutions to, problems 

associated with the access to programs, services, and facilities; and (4) research on organizational and 

individual factors that affect decisions to provide reasonable accommodations and resulting in employment outcomes. 
NIDRR Program Directory FY 2012 - ADA Technical Assistance Projects

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ADA Technical Assistance Projects 

Region IV - AL, FL, GA, KY, MS, NC, SC, and TN 

Southeast ADA National Network Regional Center - Region IV 

Syracuse University 

Burton Blatt Institute 

1419 Mayson Street 

Atlanta, GA 30324 

sedbtacproject@law.syr.edu 

www.adasoutheast.org 

Principal Investigator: Peter D. Blanck, PhD, JD 315/443-9703 

Public Contact: Pamela Williamson, Project Director 800/949-4232 (V/TTY, in AL, FL, GA, KY, MS, 

NC, SC, and TN); 404/541-9001 (V/TTY); Fax: 404/541-9002 

Project Number: H133A110021 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Shelley Reeves 

NIDRR Funding: FY 11 $1,241,643; FY 12 $1,242,940; FY 13 $1,244,127; FY 14 $1,242,860; FY 15 

$1,243,316

Abstract: The Southeast ADA Center Consortium consists of over 100 organizations and entities across 

8 states representing all Americans with Disabilities Act (ADA) stakeholders, including people with 

disabilities, businesses, state and local government agencies, service providers, vocational rehabilitation 

agencies, and others. The Southeast ADA Center: (1) facilitates implementation of and compliance with 

the ADA through training, technical assistance, and broad dissemination of accurate, timely information; (2) conducts outreach to a diverse audience of stakeholders; (3) builds the ADA knowledge and 

implementation capacity of the state and local affiliates; and (4) advances the social, civic, and economic participation of people with disabilities through targeted outreach, knowledge translation, and 

capacity building in the region. The Center improves understanding by ADA stakeholders of their rights 

and responsibilities under the ADA, related laws, and improves knowledge about evidence-based best 

practices for advancing civil rights and increasing disability equality using a Knowledge-to-Actionbased framework for knowledge translation that incorporates outreach, training, dissemination, technical 

assistance, and capacity-building to the next level and ensures behavioral and practice-oriented changes 

by ADA stakeholders. A comprehensive plan of continuous quality improvement and evaluation tracks 

these mid-term outcomes to demonstrate change across the region. 
NIDRR Program Directory FY 2012 - ADA Technical Assistance Projects

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ADA Technical Assistance Projects 

Region V - IL, IN, MI, MN, OH, and WI 

Great Lakes ADA National Network Regional Center - Region V 

University of Illinois at Chicago 

Department of Disability and Human Development 

1640 West Roosevelt Road, Room 405 

Chicago, IL 60608-6904 

adata@adagreatlakes.org 

www.adagreatlakes.org; www.ada-audio.org; www.accessibilityonline.org; www.accessibletech.org; 

www.adacaselaw.org; www.adatraining.org; www.adaconferences.org

Principal Investigator: Robin A. Jones 312/996-1059 

Public Contact: Robin A. Jones, Project Director 800/949-4232 (V/TTY, in IL, IN, MI, MN, OH, and 

WI); 312/413-1407 (V/TTY); Fax: 312/413-1856 

Project Number: H133A110029 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Shelley Reeves 

NIDRR Funding: FY 11 $1,246,000; FY 12 $1,246,000; FY 13 $1,246,000; FY 14 $1,246,000; FY 15 

$1,246,000

Abstract: The Great Lakes ADA Center promotes awareness and compliance with the Americans with 

Disabilities Act (ADA). Project goals and objectives center on the provision of high quality, timely, and 

accurate technical assistance, training, and material dissemination to identified target audiences. The 

Great Lakes ADA Center provides responsive and proactive services utilizing a comprehensive service 

delivery model. The technical assistance, training, and information needs of the individual and their 

families, employers, business, government, educational entities, design professionals, and disabled veterans employment programs are part of an on-going needs assessment, and programs and activities are 

tailored accordingly. Project activities and goals include: (1) operation of a toll-free number and use of 

current and emerging technologies for information and referral; (2) enhancement of the Center’s existing 

regional network of individuals and organizations who can provide on-site consultation, technical assistance, and training as needed; (3) conducting and sponsoring training events and activities at the local, 

state, and regional level focused on raising awareness of the ADA; (4) development and dissemination 

of technical assistance and training products and tools that are evidence based; (5) identification and dissemination of best practices related to the recruitment, hiring and retention of qualified individuals with 

disabilities by employers and employment training programs; (6) promotion of the acquisition and utilization of accessible information technology by employers, business, government and educational institutions; and (7) utilization of existing and emerging technology to promote the exchange of information 

including websites, list servs, e-newsletters, mobile applications, social media, multi-faceted distance 

learning strategies and techniques, self-paced learning, and web-based assessment tools. Through partnerships and collaboration at the local, state, regional, and national level the Center maximizes resources 

ensuring that a high quality and quantity of activity occurs. 
NIDRR Program Directory FY 2012 - ADA Technical Assistance Projects

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ADA Technical Assistance Projects 

Region VI - AR, LA, NM, OK, and TX 

Southwest ADA National Network Regional Center - Region VI 

The Institute for Rehabilitation and Research (TIRR) 

Independent Living Research Utilization (ILRU) 

2323 South Shepherd, Suite 1000 

Houston, TX 77019-7024 

swdbtac@ilru.org 

www.southwestada.org; www.dlrp.org 

Principal Investigator: Lex Frieden, LLD 

Public Contact: Wendy Wilkinson, Project Director 800/949-4232 (V/TTY, in AR, LA, NM, OK, and 

TX); 713/520-0232 (V); 713/520-5136 (TTY); Fax: 713/520-5785 

Project Number: H133A110027 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Bonnie Gracer 

NIDRR Funding: FY 11 $1,110,822; FY 12 $1,110,958; FY 13 $1,110,458; FY 14 $1,111,192; FY 15 

$1,111,032

Abstract: The Southwest ADA Center at ILRU provides outreach, training, technical assistance, information, dissemination, and capacity building to the target population of individuals and entities with 

rights and responsibilities under the Americans with Disabilities Act (ADA), including local, regional, 

and national groups representing stakeholders. Special target audiences include: minority individuals 

with disabilities, postsecondary institutions, small businesses, veterans with disabilities, individuals 

newly covered by the ADA Amendments Act (ADAAA) of 2008, employers, hospitality industry, and 

emergency preparedness professionals. The purpose of the Southwest ADA Center is to maximize the 

full inclusion and integration into society of individuals with disabilities, especially individuals with 

severe disabilities, and to improve services authorized under the Rehabilitation Act. The goal of the 

Center is to improve understanding by stakeholders of their rights and responsibilities under the ADA by 

implementing a sustained program of ADA Network Services, which include: (1) high impact training 

at national, regional, state, and local levels with a large cadre of experienced, qualified, and well-trained 

instructors using the highest quality training materials vetted by the ADA Knowledge Translation (KT) 

Center, other ADA Centers, affiliates, trainers, and targeted stakeholders, including materials from U.S. 

Departments of Justice and Education, other ADA Centers, federally funded projects, and ILRU; (2) dissemination of knowledge about the rights and responsibilities of the ADA utilizing technology ranging 

from print mail to the latest popular social media tools and networking websites to reach the broadest audiences; (3) timely, relevant, accurate technical assistance activities that respond to the needs of individuals and entities that are well-managed, appropriately staffed and evaluated regularly to identify trends 

to improve future services; (4) a collaborating group of 55+ experienced, skilled, and well-respected 

individuals and organizations from Region VI and around the country to assist ILRU’s highly skilled 

and experienced personnel deliver proposed services to targeted stakeholders; (6) collaboration with 

the ADA KT Center to record and analyze data about stakeholder requests for information and services; 

and (7) enhancement of efficiency and effectiveness of the overall ADA Network Services by partnering 

with ADA KT Center and Regional Centers to develop and distribute products and services relevant to 

ADA stakeholders in multiple regions. 
NIDRR Program Directory FY 2012 - ADA Technical Assistance Projects

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ADA Technical Assistance Projects 

Region VII - IA, KS, MO, and NE 

Great Plains ADA National Network Regional Center - Region VII 

University of Missouri at Columbia 

100 Corporate Lake Drive 

Columbia, MO 65203 

ada@missouri.edu 

www.adaproject.org 

Principal Investigator: Jim de Jong, Project Director 

Public Contact: 800/949-4232 (V/TTY, in IA, KS, MO, and NE); 573/882-3600 (V/TTY); Fax: 

573/884-4925 

Project Number: H133A110022 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Shelley Reeves 

NIDRR Funding: FY 11 $1,000,000; FY 12 $1,000,000; FY 13 $999,999; FY 14 $1,000,000; FY 15 

$1,000,000

Abstract: The Great Plains ADA Center continues to expand services as the ADA National Network 

Regional Center for federal Region VII, serving Kansas, Iowa, Missouri, and Nebraska. The mission of 

the Center is to ensure the full opportunity for participation of persons with disabilities and their families 

in all facets of American life by providing professional-quality services to Americans with Disabilities 

Act (ADA) stakeholders. Target populations include all entities and individuals with disability-related 

issues that have rights and responsibilities under the ADA. The Great Plains ADA Center: (1) implements a sustained program of outreach, training, technical assistance, information dissemination, and 

capacity building (collectively ADA Network Services); (2) provides information to ADA stakeholders 

on both longstanding ADA requirements as well as the ADA Amendments Act, the 2010 Standards for 

Accessible Design, and subsequent judicial/regulatory changes; (3) identifies best practices through collaborative initiatives addressing emerging critical issues such as Olmstead implementation, emergency 

preparedness, and the professionalization of ADA Coordinators; (4) sponsors the National ADA Symposium, which offers a comprehensive matrix of training opportunities presented by nationally recognized 

authorities and experts in their fields; and (5) partners with the ADA Network Knowledge Translation 

Center and other ADA Regional Centers to develop, provide, and distribute ADA training and technical 

assistance materials and other informational products and services. Through a collaborative structure of 

partnerships with local, regional and national organizations the Center provides core service delivery of 

ADA knowledge to the stakeholders of Region VII. 
NIDRR Program Directory FY 2012 - ADA Technical Assistance Projects

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ADA Technical Assistance Projects 

Region VIII - CO, MT, ND, SD, UT, and WY 

Rocky Mountain ADA National Network Regional Center - Region VIII 

Meeting the Challenge, Inc. 

3630 Sinton Road, Suite 103 

Colorado Springs, CO 80907-5072 

rmdbtac@mtc-inc.com 

www.adainformation.org 

Principal Investigator: Jana Burke, PhD, Project Director 

Public Contact: 800/949-4232 (V/TTY, in CO, MT, ND, SD, UT, and WY); 719/444-0268 (V/TTY); 

Fax: 719/444-0269 

Project Number: H133A110018 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 11 $1,000,000; FY 12 $1,000,000; FY 13 $1,000,000; FY 14 $1,000,000; FY 15 

$1,000,000

Abstract: The Rocky Mountain ADA Center provides information, guidance, and training on the Americans with Disabilities Act (ADA) tailored to meet the needs of individuals and organizations in Colorado, Montana, North Dakota, South Dakota, Utah, and Wyoming. The Center presents a comprehensive 

program of training, dissemination, and technical assistance activities designed to move toward full 

implementation of the ADA throughout the region. The Center continues its program of technical assistance based on the concept of mass customization to address the specific needs of stakeholders across 

the region. The training program takes advantage of technology and customized curricula to ensure 

maximum impact of training activities. Dissemination efforts provide tailored materials that provide 

actionable information for the specific needs of stakeholders. The Center also has an extensive plan of 

evaluation and ongoing regional needs assessment research to maximize the efficiency and effectiveness 

of the ADA Network services. 
NIDRR Program Directory FY 2012 - ADA Technical Assistance Projects

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ADA Technical Assistance Projects 

Region IX - AZ, CA, HI, NV, and the Pacific Basin 

Pacific ADA National Network Regional Center - Region IX 

Public Health Institute 

555 12th Street, Suite 130 

Oakland, CA 94607-4046 

adatech@adapacific.com 

www.adapacific.org 

Principal Investigator: Erica C. Jones 510/285-5600 (V/TTY) 

Public Contact: Erica C. Jones, Project Director 800/949-4232 (V/TTY, in AZ, CA, HI, NV, and the 

Pacific Basin); 510/285-5600 (V/TTY); Fax: 510/285-5614 

Project Number: H133A110024 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Shelley Reeves 

NIDRR Funding: FY 11 $1,246,000; FY 12 $1,246,000; FY 13 $1,246,000; FY 14 $1,246,000; FY 15 

$1,246,000

Abstract: The Pacific ADA Center implements an integrated, multi-dimensional initiative that facilitates 

enhanced awareness, understanding, compliance, and implementation of the Americans with Disabilities Act (ADA) in all states and territories in within the region. The program places special emphasis on 

collaborations by expanding the existing Pacific Region ADA Network of affiliate and local community 

organizations to maximize meeting the grassroots level needs of ADA stakeholders (such as employers, 

businesses, state and local governments, and individuals with disabilities), as well as the development 

of resources in the emerging areas of accessible information technology and emergency preparedness. 

Pacific ADA Center goals include: (1) improving understanding regarding rights and responsibilities and 

implementation of the Americans with Disabilities Act of 1990, as amended (ADA), the ADA Amendments Act of 2008 (ADAAA) and corresponding regulations for Title I from the U.S. Equal Employment Opportunity Commission, the regulations for Title II and III of the ADA published by the U.S. 

Department of Justice in 2010, as well as emerging compliance issues in information technologies and 

emergency preparedness, and continuing developments in ADA case law, policy, and implementation 

through comprehensive training, dissemination, and technical assistance activities to individuals with 

rights and responsibilities under the ADA; (2) improving understanding of ADA stakeholders’ needs for, 

and receipt of, Region IX services over time through data entry and analysis of Center activities in conjunction with the ADA National Network made up of the ADA Knowledge Translation (KT) Center and 

other ADA Regional Centers; and (3) enhancing the efficiency and effectiveness of ADA information 

dissemination, awareness, and referral activities by establishing effective, coordinated local, regional, 

and national resource networks, including by partnering with the ADA KT Center and other regional 

ADA Centers to develop, implement, and evaluate materials, products, trainings, and services that are 

useful to ADA stakeholders. The Pacific ADA Center conducts a comprehensive evaluation that monitors the quality, scope, and effectiveness of all Center programs and activities, including a quantitative 

evaluation program that tracks programmatic outputs related to Center services, and a qualitative evaluation program designed to assess the impacts and outcomes of our work. 
NIDRR Program Directory FY 2012 - ADA Technical Assistance Projects

7-12

ADA Technical Assistance Projects 

Region X - AK, ID, OR, and WA 

Northwest ADA National Network Regional Center - Region X 

University of Washington 

The Center for Continuing Education in Rehabilitation 

6912 220th Street SW, Suite 105 

Mountlake Terrace, WA 98043 

dbtacnw@u.washington.edu 

www.dbtacnorthwest.org 

Principal Investigator: Kathe Matrone, PhD 425/771-7436 

Public Contact: Don Brandon, Project Director 800/949-4232 (V/TTY, AK, ID, OR, and WA); 

425/248-2480 (V); Fax: 425/774-9303 

Project Number: H133A110015 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Shelley Reeves 

NIDRR Funding: FY 11 $1,000,000; FY 12 $1,000,000; FY 13 $1,000,000; FY 14 $1,000,000; FY 15 

$1,000,000

Abstract: The purpose of the ADA National Network Regional Center – Region X (Northwest ADA 

Center) is to provide a sustained program of outreach, training, technical assistance, information dissemination, and capacity building to Americans with Disabilities Act (ADA) stakeholders in Region X. 

These ADA Network Services assist any individual or entity with rights and responsibilities under the 

ADA in understanding those rights and responsibilities. These services address established ADA requirements, more recent legislative and regulatory changes, as well as information in emerging areas. The 

Northwest ADA Center also participates with the ADA Knowledge Translation Center and other ADA 

Regional Centers in assessing the needs and documenting the receipt of ADA Network Services, as 

well as enhancing efficiency and effectiveness of ADA Network Services. The Northwest ADA Center 

achieves these outcomes through three major delivery strategies: (1) services provided throughout the 

region (regional office activities), (2) state anchor activities (state partners in AK, ID, OR, WA), and (3) 

community impact partners (local partners). Project activities within these delivery strategies include: 

outreach; training; technical assistance; dissemination of information; capacity building; maintaining 

online resources (i.e. website, databases); developing projects and tools; offering distance education; 

data analysis and needs determination; and identifying, developing, and maintaining local partnerships 

and collaborations. 
NIDRR Program Directory FY 2012 - ADA Technical Assistance Projects

7-13

ADA Technical Assistance Projects 

Texas 

ADA Participation Action Research Consortium 

The Institute for Rehabilitation and Research (TIRR) 

Independent Living Research Utilization (ILRU) 

2323 South Shepherd, Suite 1000 

Houston, TX 77019-7024 

swdbtac@ilru.org 

www.southwestada.org; www.dlrp.org 

Principal Investigator: Lex Frieden, LLD; Joy Hammel, PhD, OTR/L; 713/520-0232; 312/996-3513

Public Contact: Lex Frieden, LLD 713/520-0232 (V); 713/520-5136 (TTY); Fax: 713/520-5785 

Project Number: H133A120008 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 12 $613,091; FY 13 $614,007; FY 14 $613,688; FY 15 $613,828; FY 16 

$613,651

Abstract: This project examines what factors are influencing societal participation of citizens with disabilities within and at community and regional levels. The project conducts multiregional strategic gap 

analyses across three primary participation areas mandated by the ADA: community living, community 

participation, and work/economic. This includes mining of existing large population and community 

datasets to inform the benchmarking of key participation disparities and promising practices at state, 

regional, and community levels, as well as collecting new individual data with people who are trying to 

move out of nursing homes and institutions to the community post-ADA and Olmstead Decision to add 

their participation experiences and issues, a voice that has not been represented in existing ADA and 

participation research. As a second aim, this consortium of ADA Regional Centers and a network of disability and ADA stakeholders utilizes a participatory Strategic Gap Analysis process to (1) identify key 

indicators of high priority and high feasibility to collect in communities, (2) create a Community Participation Action Toolkit (CPAT) for assessing these indicators within communities, (3) pilot test this Toolkit within 18 communities across 6 collaborating ADA Center regions, (4) analyze results and translate 

back to communities in the form of benchmarking reports, and (5) create a toolkit of resources to accompany CPAT for both ADA Centers and community stakeholders to plan initiatives in their communities 

to reduce disparities and increase full participation. The aim is to create a tool and a systematic process 

for assessing community participation at the community level that could be shared with communities via 

the ADA Center collaboration, and formally linked to ADA Center information resources and technical 

assistance, and future participatory research initiatives. 
Contents

Rehabilitation Research and Training Centers (RRTCs) ......................................................................3

Disability and Rehabilitation Research Projects ...................................................................................4

Fellowships (Distinguished) .................................................................................................................7

Fellowships (Merit) .............................................................................................................................10

Advanced Rehabilitation Research Training Projects .........................................................................18

Capacity Building for Rehabilitation Research and Training

In the arena of capacity building, NIDRR has focused its efforts on the personal and 

professional development of scientists, advocates, and people with disabilities, and 

is expanding this approach to include development of the capacity of institutions and 

organizations, especially those that address the needs of underserved populations. At the 

individual level, NIDRR focuses on capacity building to ensure a source of researchers 

to carry out the research agenda. In addition, NIDRR capacity building at this level 

enhances the ability of researchers to generate useful new knowledge. NIDRR historically 

has sought to increase the number of individuals from underrepresented groups in this 

effort, particularly those with disabilities. At the organizational or systems level, NIDRR 

capacity building supports the framework for carrying out individual level research work. 

At the systems level, all NIDRR programs may be said to involve capacity building, 

in that NIDRR funding is intended to increase the capacity of the field to conduct high 

quality research directed at its long-term goals and objectives.

NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-3

Rehabilitation Research and Training Centers (RRTCs) 

Illinois 

RRTC on Psychiatric Disability and Co-occurring Medical Conditions 

University of Illinois at Chicago 

Center on Mental Health Services Research and Policy 

1601 West Taylor Street, 4th Floor, M/C 912 

Chicago, IL 60612 

jonikas@psych.uic.edu 

www.cmhsrp.uic.edu/health 

Principal Investigator: Judith A. Cook, PhD 312/355-3921 

Public Contact: Jessica A. Jonikas 312/355-1696 (V); 312/422-0706 (TTY); Fax: 312/355-4189 

Project Number: H133B100028 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: David W. Keer 

NIDRR Funding: FY 10 $649,976; FY 11 $649,976; FY 12 $649,976; FY 13 $649,976; FY 14 

$649,976

Abstract: The Rehabilitation Research Training Center (RRTC) on Psychiatric Disability and Co-occurring Medical Conditions conducts a series of projects to identify and reduce health disparities among 

people with psychiatric disabilities while promoting wellness and recovery, enhancing employment 

outcomes, and providing targeted education and training. Research projects include a seven-state health 

screening of people with psychiatric disabilities to estimate the prevalence of medical co-morbidities 

and people’s health care needs. Also included are two randomized controlled trial studies on: (1) an 

electronic decision support system to motivate smoking cessation treatment, and (2) the Georgia Peer 

Support Whole Health model to determine its effectiveness in helping people set and achieve personal 

health goals. Another project involves assessment of the impact of using a disease registry to improve 

health and mental health care coordination for people with co-occurring diabetes and psychiatric disabilities. The final research project involves developing and testing a new model combining evidence-based 

practice-supported employment with peer wellness promotion. Training projects include adaptation of an 

evidence-based weight management intervention into a curricular format for use by clinicians and peer 

providers, as well as a how-to health screening manual to be tested in three locations to promote public 

policy shifts that improve medical care. Another program equips medical students and residents with 

knowledge about evidence-based medicine when treating co-occurring psychiatric disability and medical 

conditions, while another project explores the utility of an electronic performance-tracking and outcomes-monitoring system linking statewide peer-run self-help centers. Also offered is an on-line instructional program, as well as the creation and evaluation of a web-based employee wellness program for a 

peer workforce employed in five states. Also included is a project to create large-scale system change by 

using Medicaid dollars to fund peer-delivered illness prevention and health promotion services. Finally, 

the Center is convening a state-of-the-science national conference in 2014 resulting in a comprehensive 

report. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-4

Disability and Rehabilitation Research Projects 

New Hampshire 

Building Knowledge and Capacity in the Rehabilitation and Recovery of African Americans 

Suffering from Severe Mental Illness: The Dartmouth-Howard 

Dartmouth College 

Dartmouth Psychiatric Research Center 

2 Whipple Place, Suite 202 

Lebanon, NH 03766 

Principal Investigator: Rob Whitley, PhD 

Public Contact: 603/448-0263; Fax: 603/448-3976 

Project Number: H133A080063 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Shelley Reeves 

NIDRR Funding: FY 08 $354,345; FY 09 $355,566; FY 10 $349,740; FY 11 $353,228; FY 12 

$355,891

Abstract: The goal of the three projects conducted by this center is to understand the broad service 

experience of African Americans in psychiatric rehabilitation. The first project assesses the influence on 

rehabilitation of living in independent housing units in small, relationship-centered buildings that accommodate other people in recovery from mental illness. Seven of these small communities, each with 

approximately 120 apartments, are the focus of this project. These are located in and around Washington, 

DC, and are studied longitudinally for three years using focus groups, interviews, and ethnography to 

assess influence of living in such a building on recovery and community integration. The second project 

examines the process of rehabilitation for African Americans with a co-occurring severe mental illness 

and substance-use disorder. Participants are those whose primary substance use is illegal drugs, and who 

are receiving either (1) dual-diagnosis case management; (2) case management plus group therapy; or 

(3) case management plus contingency management. Participants are followed quantitatively and qualitatively over 18 months to assess how African Americans respond to these treatments, as well as their 

subjective perception of treatment delivery and impact. The final project is a study of the service experience of African Americans in supported employment. Participants in six different supported employment 

programs are assessed quantitatively, for drop-outs, engagement, and missed appointments, and qualitatively through interviews and participant observation to understand the dynamics of the patient-provider 

interaction. The aim of this research is to assess the cultural competence of such programs, with an eye 

to building improved models tailored to African Americans. This research involves a collaboration between Dartmouth Psychiatric Research Center and Howard University College of Medicine, Department 

of Psychiatry. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-5

Disability and Rehabilitation Research Projects 

South Carolina 

Center on Health Outcomes Research and Capacity Building for Underserved Populations with 

SCI and TBI 

Medical University of South Carolina 

College of Health Professions

Department of Rehabilitation Sciences 

77 President Street, Suite 117

PO Box 250700

Charleston, SC 29425 

cokerj@musc.edu 

academicdepartments.musc.edu/chp/CHORCUP/index.htm

www.sciandtbiresearch.blogspot.com 

Principal Investigator: James S. Krause, PhD 843/792-1337 

Public Contact: Jennifer Cokerr, MPH 843/792-7051; Fax: 843/792-5649 

Project Number: H133A080064 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Shelley Reeves 

NIDRR Funding: FY 08 $353,133; FY 09 $353,134; FY 10 $353,134; FY 11 $354,133; FY 12 

$353,133

Abstract: This project builds the capacity of institutions that address the needs of underserved populations by: (1) conducting two innovative studies to generate new knowledge on the health of three underserved racial-ethnic groups with traumatic neurologic injuries; (2) providing capacity building through 

collaboration with South Carolina State University, a historically Black university, specialized instruction of undergraduate and graduate students, and widespread training to institutions and organizations 

that represent underserved populations; and (3) providing technical assistance to a wide array of target 

audiences to enhance the capacity to meet the needs of underserved populations. In Study 1, researchers 

interview 500 African Americans from population-based surveillance systems with spinal cord injuries 

(SCI) or traumatic brain injuries (TBI) and compare their health behaviors, access to services, and the 

prevalence of chronic diseases with African Americans in the general population (based on CDC surveillance). Researchers then identify the extent to which disparities observed in the general population are 

magnified after injury. Study 2 involves interviews with 836 participants with SCI, 575 of whom come 

from underserved populations (African Americans, Hispanics, and American Indians) in order to identify 

psychological, environmental, and behavioral predictors of secondary health conditions. Mediational 

models are tested to identify the risk and protective factors most strongly associated with disparities in 

health outcomes (e.g., pain, depression, pressure ulcers) and the extent to which disparities disappear 

when accounting for these factors. Researchers also determine whether the predictive model is invariant 

across race-ethnicity (i.e., whether the significant predictors are the same across different racial-ethnic 

groups) and, if not, which predictors are most important for each. Capacity-building efforts include 

workshops, mentorship of undergraduate and graduate students, and technical assistance. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-6

Disability and Rehabilitation Research Projects 

Virginia 

Empowerment: Building Research Infrastructure Capacity 

Virginia Commonwealth University 

Department of Rehabilitation Counseling 

730 East Broad Street, Room 3070

PO Box 980330 

Richmond, VA 23298 

jmiller28@vcu.edu 

www.vcu-projectempowerment.org 

Principal Investigator: Paul Wehman, PhD 804/828-8797 

Public Contact: Jessica Miller 804/828-2617; Fax: 804/828-1321 

Project Number: H133A080060 

Start Date: October 01, 2008 

Length: 60 months 

NIDRR Officer: Pimjai Sudsawad, ScD 

NIDRR Funding: FY 08 $356,550; FY 09 $356,373; FY 10 $356,373; FY 11 $356,614; FY 12 

$356,593

Abstract: This project identifies and evaluates current practice and methods in the conduct of minority disability research, offers research findings, and improves the capacity of minority institutions and 

persons with disabilities to effectively conduct and disseminate such research, thereby advancing the 

state of the art and capacity in this research area. The project conducts three primary studies: (1) a national survey that examines the experiences of Americans with disabilities from underrepresented racial 

and ethnic minority groups to illuminate the current capacity of the public rehabilitation and disability system, and what research methods, dissemination practices, and strategies are needed to advance 

culturally competent research in the field; (2) a longitudinal study of post-injury unemployment for 

minority persons with traumatic brain and spinal cord injuries; and (3) prevalence and trends in employment discrimination due to disability for different ethnic groups. In addition to these three studies, the 

project has seven objectives: (1) establish meaningful collaborations and partnerships with historically 

Black universities, (2) convene a major Think Tank Summit in Year 1 that becomes an ongoing Minority Disability Research Consortium, (3) create and implement an ongoing interactive web portal, (4) 

mentor interested minority students and faculty members, (5) infuse minority disability research best 

practices into research courses, (6) teach grant writing and publishing skills, and (7) conduct a State-ofthe-Science Conference. The proceedings from such a conference and the results from the three studies 

lead to a major project outcome of a Handbook on Minority Disability Research. Other project outcomes 

include, but are not limited to, published papers from the three studies; a national network of individuals with disabilities and minorities from which the efficacy of research and dissemination practices can 

be evaluated in an ongoing manner; a web database of exemplary research studies; and trained minority 

students and university faculty who can implement minority disability research best practices identified 

by this effort and produce more research, including funded research via NIDRR grants, in the future. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-7

Fellowships (Distinguished) 

Virginia 

Comparison of Transition Programs for Students with Intellectual Disability: Are Experiences, 

Supports, and Outcomes Different for those in Postsecondary Education Programs? 

Colleen A. Thoma 

15207 Powell Grove Road 

Midlothian, VA 23112 

cathoma@vcu.edu 

Principal Investigator: Colleen A. Thoma 

Public Contact: 804/761-7713; Fax: 804/225-3554 

Project Number: H133F110042 

Start Date: October 01, 2011 

Length: 12 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 11 $75,000; FY 12 (No-cost extension through 12/31/2012)

Abstract: The purpose of this study is to evaluate postsecondary programs (PSE) for students with intellectual disabilities (ID), and determine how programs are designed to provide services to young adults 

with ID. Students with disabilities, in particular students with ID, continue to lag behind their peers 

without disabilities in terms of their post-school outcomes. In this study, six different post-secondary 

education programs that provide educational and/or transition supports to students with ID between the 

ages of 18 and 22 participate in an in-depth, qualitative study. Information is collected from students, 

teachers, faculty, program administrators, and/or parents. Similarly, information about the educational 

and transition supports and services to youth with ID between the ages of eighteen and twenty-two 

who are enrolled in school-based transition programs is also collected to determine the differences and 

similarities between the two settings, types of programs, and outcomes anticipated for their participants. 

The framework for evaluation builds upon a research-based universal-design-for-learning approach to 

academic instructional design and implementation, and links this to evidence-based practices for transition. This framework provides an opportunity to increase our understanding of the opportunities and 

experiences provided to students with ID in transition programs that are PSE and school-based as well as 

establishing the groundwork for future research, policy, and advocacy on transition services for students 

with ID. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-8

Fellowships (Distinguished) 

Washington 

Furthering Collaboration Among Disability and Aging Research Networks 

Ivan R. Molton, PhD 

1959 Northeast Pacific Street 

Seattle, WA 98195 

imolton@u.washington.edu 

Principal Investigator: Ivan R. Molton, PhD 

Public Contact: 206/543-3602

Project Number: H133F110019 

Start Date: October 01, 2011 

Length: 12 months 

NIDRR Officer: Margaret Campbell, PhD 

NIDRR Funding: FY 11 $75,000; FY 12 (No-cost extension through 09/30/2013)

Abstract: The long-term objectives of this study are to assess and directly target the disconnection 

between aging and disability researchers via two interrelated projects: (1) a bibliometric analysis of 

the citation network present in aging and disability journals over time, which reveals how the research 

networks have or have not interacted, and (2) the empirical standardization and testing of a key research 

term (“secondary health conditions”) with relevance to both aging and disability research networks. 

Project 1 includes collaboration with members of a specialized research laboratory with expertise in 

bibliometric network analysis. This project analyzes the Thompson Reuters Journal Citation Reports 

database, which contains more than 150 million individual articles published over the past 17 years. 

Project 2 involves formation and testing of a structural equation model of the construct of “secondary 

conditions.” Project activities include consultation with leading experts in bibliometric network analysis 

(project 1), and in large database management and structural equation modeling (project 2). 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-9

Fellowships (Distinguished) 

West Virginia 

Explorative Study of Service Animal Utilization in the Workplace 

Margaret K. Glenn, EdD 

West Virigina University

College of Human Resources and Education

PO Box 6122 

Morgantown, WV 26506-6122 

Margaret.Glenn@mail.wvu.edu 

Principal Investigator: Margaret K. Glenn, EdD 

Public Contact: 304/685-9408

Project Number: H133F120031 

Start Date: October 01, 2012 

Length: 12 months 

NIDRR Officer: Joseph A. DePhillips 

NIDRR Funding: FY 12 $75,000

Abstract: This research project creates a foundation for understanding the role of service animals in the 

lives of people with disabilities and the practices that allow for appropriate access and positive outcomes 

in the workplace. Project goals are accomplished through systematic literature reviews and Concept 

Mapping/Pattern Matching, a mixed methods form of structural conceptualization used to assess complex issues from the perspective and needs of a diverse group of stakeholder while building on a foundational understanding augmented by retrospective single case studies of the expanded use of service dogs: 

hearing dogs and service dogs for people with disabilities other than those related to vision or hearing 

for purposes of medical response, mobility assistance, psychiatric service, and seizure response. These 

case studies demonstrate the various aspects of these how these animal partnerships and employment 

relate to each other leading to the organization of a relational database that can be used in future research 

efforts and to expand current project’s findings. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-10

Fellowships (Merit) 

Illinois 

Motor Unit Control Property Changes Post-Stroke: A High-Yield Surface EMG 

Decomposition Analysis 

Xiaoyan Li 

Northwestern University 

345 East Superior Street, Suite 1406 

Chicago, IL 60611 

xiaoyan-li-1@northwestern.edu 

Principal Investigator: Xiaoyan Li 

Public Contact: 312/925-5622

Project Number: H133F110033 

Start Date: October 01, 2011 

Length: 12 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 11 $65,000; FY 12 (No-cost extension through 9/30/2013)

Abstract: This research project investigates the origins of hemispheric stroke-induced muscle weakness. 

Specifically, this project examines the associations between weakness and motor unit control properties 

(i.e. recruitment and firing rate). An examination is performed using the most recently developed highyield surface electromyogram (EMG) decomposition technique, which allows tracking single motor unit 

activity up to maximum voluntary contraction. Different degrees of compression of motor unit recruitment range and reduction of motor unit firing rates in paretic muscles of stroke survivors are observed. 

Examination of motor unit properties post-stroke assists in identifying specific mechanisms of muscle 

weakness, and thereby help to guide rehabilitation. Additionally, these data are significant in the development of theoretical models examining relationships between motor unit and whole muscle properties 

post-stroke. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-11

Fellowships (Merit) 

Illinois 

Cross-Sector Patterns of Treatment for Children with Autism 

Lucy A. Bilaver 

Chapin Hall at the University of Chicago 

1313 East 60th Street 

Chicago, IL 60637 

labilave@gmail.com 

Principal Investigator: Lucy A. Bilaver 

Public Contact: 312/503-3265

Project Number: H133F120019 

Start Date: October 01, 2012 

Length: 12 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 12 $65,000

Abstract: This study characterizes how parents combine treatments for autism across both school and 

health care service sectors during early childhood, a period of development critical for altering the trajectory of impairment associated with autism spectrum disorder (ASD). The specific aims of this study 

are to (1) identify population-average patterns of service use over time in both the school and health care 

settings, (2) identify individual trajectories of service use over time in both the school and health care 

settings, (3) identify latent treatment type statuses, and (4) identify latent treatment type status transition over time. Each of the specific aims tests hypotheses of the association between service patterns and 

child, family, or local school district characteristics. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-12

Fellowships (Merit) 

Illinois 

EEG Measures of Cognitive Workload in Prosthetic Use 

Sean P. Deeny, PhD 

Rehabilitation Technologies & Outcomes Lab

Center for Bionic Medicine

Rehabilitation Institute of Chicago

345 East Superior Street; Room #: RIC 1771

Chicago, IL 60611 

sean.deeny@northwestern.edu 

Principal Investigator: Sean P. Deeny, PhD 

Public Contact: 312/238-5651

Project Number: H133F120017 

Start Date: October 01, 2012 

Length: 12 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 12 $65,000

Other Funding: FY 12 $15,000 (American Orthotic and Prosthetic Association)

Abstract: This project develops a quantitative and objective outcome measure obtained through electroencephalography (EEG) to evaluate the cognitive burden associated with myoelectric prosthesis control. 

A primary goal in development of prosthetic limbs is to make the control of limb function as natural and 

“intuitive” to the user as possible. Natural, intuitive control lowers the cognitive demand and the resultant user fatigue, and increases user satisfaction with the prosthetic limb. While many prosthetic limbs 

with technically advanced capabilities are commercially available a quantitative assessment of their 

usability improves user acceptance, thus allowing users to achieve their goals of returning to work and 

maintaining an active and healthy lifestyle. Additionally, this information is very useful for the design 

and development of prostheses. This project develops an EEG-based measure of cognitive effort during prosthetic limb use in a control (non-amputee) population that is robust enough for easy adaptation 

to upper and lower limb amputee populations. Real-time, quantitative, and objective EEG measures of 

cognitive effort are adapted from the cognitive neuroscience literature and tested in non-amputees using 

virtual or bypass myoelectric prosthetic limbs. Event-related potentials (ERPs) reflecting cortical allocation of neural resources during planning and execution of movements with both virtual and bypass 

prosthetic limbs are examined under varying levels of task difficulty to establish a robust measure of 

cognitive workload which is then applied to evaluate and compare cognitive effort required using different strategies of myoelectric prosthesis control. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-13

Fellowships (Merit) 

Illinois 

Individual, Household, and Community-Level Correlates of Social Participation for Low-Income 

Children with Disabilities: An Ecological Analysis Using Making Connections Survey Data 

Mansha Parven Q. Mirza 

Feinberg School of Medicine 

345 East Superior Street 

Chicago, IL 60611 

mansha-mirza@u.northwestern.edu 

Principal Investigator: Mansha Parven Q. Mirza 

Public Contact: 312/503-6536

Project Number: H133F120024 

Start Date: October 01, 2012 

Length: 12 months 

NIDRR Officer: Hugh Berry, EdD 

NIDRR Funding: FY 12 $65,000

Abstract: This project examines the influence of individual, household, and community-level factors on 

the social participation of children with disabilities (ages 3 to 17) using data from 10 low-income communities dispersed across the US. The target population for this study includes children with disabilities 

from low-income households and living in disadvantaged neighborhoods. Specific aims of this project 

include: (1) identifying the extent of gaps in social participation between disabled and non-disabled 

children living in low-income communities and assessing the effect of individual, household, and community factors on the magnitude of this gap; (2) assessing differences in barriers to social participation 

for children with and without disabilities living in low-income communities; (3) profiling the rate of 

social participation among children with disabilities and to assess the potentially differential effects of 

individual, household, and community factors on social participation of children with different types of 

disability; and (4) profiling the rate of social participation among children with disabilities by race/ethnicity and family immigration status. Data is sourced from the Making Connections survey, an initiative 

of the Annie E. Casey Foundation. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-14

Fellowships (Merit) 

Maryland 

Omega Fatty Acids in Neurological Recovery 

Christian N. Shenouda 

10 Center Drive, Room 1-1469, MSC 1604 

Bethesda, MD 20892-1604 

christianshenouda@gmail.com 

Principal Investigator: Christian N. Shenouda, MD 

Public Contact: 713/291-6613

Project Number: H133F110028 

Start Date: October 01, 2011 

Length: 12 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 11 $65,000; FY 12 (No-cost extension through 09/30/2013)

Abstract: The aim of this research is to conduct a pilot study to explore the role of docosahexaenoic 

acid and arachidonic acid (DHA, AA respectively) as plasma biomarkers of injury, severity, and recovery in traumatic brain injury (TBI). Blood samples from the Center of Neuroscience and Regenerative 

Medicine (CNRM) Biorepository are analyzed. Biorepository samples are accessed to measure the 

DHA/AA ratio post injury and correlative statistics are performed including between the DHA/AA ratio 

and Biorepository clinical TBI data. The study measures DHA/AA ratios at two timepoints: within 48 

hours and from 48 hours to 7 days. A subset of these individuals will have analysis in the sub-acute time 

point at 30 days. Levels of AA and DHA will be used as the primary outcome measures. Secondary 

outcome measures include correlation to functional scales such as the Glasgow outcome scale extended 

(GOS – E) scores, Satisfaction with Life Scale (SWLS), Beck Depression Inventory (BDI), and MRI 

abnormalities. Primary objectives would be to determine plasma DHA and AA concentrations in TBI 

patients acutely and longitudinally. Secondary objectives include correlation of abnormalities of plasma 

DHA/AA to functional outcomes as measured by the GOS-E, SWLS, and BDI. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-15

Fellowships (Merit) 

Massachusetts 

Cardiovascular Fitness, Cognition, Mood, and Function in Community-dwelling People with 

Traumatic Brain Injury (TBI) 

Jennifer M. Devine 

55 Fruit Street 

Boston, MA 02114 

devine.jennifer.m@gmail.com 

Principal Investigator: Jennifer M. Devine, MD 

Public Contact: 206/963-5638

Project Number: H133F110027 

Start Date: October 01, 2011 

Length: 12 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 11 $65,000; FY 12 (No-cost extension through 09/30/2013)

Abstract: This study explores the relationship between cardiovascular fitness, cognition, and mood and 

function in a community-dwelling population in recovery from moderate-to-severe TBI. This descriptive 

study includes community-dwelling patients referred from the University of Washington Brain Injury 

Rehabilitation Clinic and TBI Model System database who are within 24 months of TBI and who have 

a documented impairment in memory or executive function at the time of injury. Participants undergo 

VO2max assessment, neuropsychological evaluation of memory and executive function, and complete 

surveys of mood, community function, and TBI symptomatology. A three-variable correlation analysis, 

adjusted for time since injury, is performed to evaluate the relationship between VO2max, executive 

function, memory, and mood. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

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Fellowships (Merit) 

Texas 

Improving Functional Participation in Stroke 

Barbara M. Doucet, PhD 

Department of Occupational Therapy

School of Health Professions

University of Texas Medical Branch

301 University Boulevard 

Galveston, TX 77555-1142 

Principal Investigator: Barbara M. Doucet, PhD 

Public Contact: 409/747-1636; Fax: 409/747-1615 

Project Number: H133F120032 

Start Date: October 01, 2012 

Length: 12 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 12 $65,000

Abstract: This project implements a novel treatment regimen to improve hand function in persons 

with chronic stroke who have severe hemiplegia and are not eligible for constraint-induced movement 

therapy (CIMT) with the goal of increasing movement in the hand, allowing individuals to participate in 

CIMT, perform daily tasks, and re-engage in meaningful and productive activities. Researchers test the 

efficacy of a 30-day novel neuromechanical treatment regimen (NTR) for improving functional hand use 

in the hemiplegic hand with the specific goals of: (1) increasing range of motion (ROM) and strength 

in the affected wrist and fingers to fully participate in CIMT and other therapies to increase hand function, (2) promoting motor learning in the affected wrist and hand improving ability to actively grasp 

and release, and (3) improving motor and cognitive skills for greater functional hand use and increased 

participation in daily functional activities. An innovative orthotic is worn on the forearm and used for 

intensive grasp-release training combined with a regimen of electrical stimulation to promote strength 

and movement. The project uses a randomized, blocked design comparing treatment outcomes using the 

NTR (comprised of the orthotic training plus electrical stimulation) with the treatment outcomes using 

each of these interventions singularly (orthotic training only and electrical stimulation only). 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

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Fellowships (Merit) 

Texas 

Parenting in Adults with Traumatic Brain Injury 

Kacey Maestas 

Brain Injury Research Center 

2323 South Shepherd, Suite 907 

Houston, TX 77019 

maestas@bcm.edu 

Principal Investigator: Kacey Little Maestas, PhD 

Public Contact: 713/874-2030; Fax: 713/630-0529 

Project Number: H133F120013 

Start Date: October 01, 2012 

Length: 12 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 12 $65,000

Abstract: This project investigates parenting in adults with traumatic brain injury (TBI), specifically: 

(1) how the experience of TBI affects parenting skills, as well as participation and satisfaction in parental role functioning; (2) individual and environmental factors that serve as barriers or facilitators to parenting for individuals with TBI; and (3) the needs of people with TBI and their partners/spouses regarding information, education, and resources to enhance parenting after TBI. Researchers use a qualitative 

research design that incorporates in-depth, semi-structured interviews to collect data on parenting from 

persons with TBI including veterans. When available, separate interviews are conducted with spouses/

partners of persons with TBI; however, single parents with TBI are not excluded from participation. A 

secondary goal of the project is to utilize new knowledge derived from the study in the development and 

dissemination of a fully-accessible online workshop and written educational manual/materials (English 

and Spanish) for persons with TBI on improving parenting skills, participation, and satisfaction after 

TBI. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

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Advanced Rehabilitation Research Training Projects 

California 

Advanced Rehabilitation Research Training in Neuromuscular and 

Neurodevelopmental Disorders 

Regents of the University of California at Davis 

Department of Physical Medicine and Rehabilitation 

One Shields Avenue 

Davis, CA 95616-8655 

www.ucdmc.ucdavis.edu/pmr/education/fellowship.html 

Principal Investigator: Craig M. McDonald, MD 916/734-2923 

Public Contact: Patricia Settje, Education Coordinator 916/734-5292; Fax: 916/34-7838 

Project Number: H133P110005 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 11 $150,000; FY 12 $150,000; FY 13 $150,000; FY 14 $150,000; FY 15 

$150,000

Abstract: The Advanced Rehabilitation Research Training at UC Davis (ARRT) provides core research 

methodology training, advanced research training, research experience, mentorship, and career development support for clinicians, allied health professionals, and post-doctoral students committed to developing productive careers in rehabilitation research. The aim of the ARRT is to produce rigorously-trained, 

extramurally-competitive and scientifically-productive independent investigators or physician-scientists 

who improve the health outcomes, participation, and quality of life of individuals with disabilities. Over 

the course of five years, this ARRT trains ten postdoctoral or physician trainees in a two-year comprehensive program to develop specialized and multidisciplinary research skills. The focus of the research 

training is a mentored period of hypothesis-driven clinical research in areas related to the rehabilitation 

of individuals with neuromuscular diseases or neurodevelopmental disorders. The training provides core 

research competency in the following areas: (1) rehabilitation concepts and research methodology, (2) 

clinical epidemiology and study design, (3) methods in clinical research, (4) strategies for writing grants 

and publications, (5) health informatics, (6) medical statistics, and (7) responsible conduct of research. 

Advanced coursework and clinical training in neuromuscular diseases and neurodevelopmental disorders completes the didactic coursework. Each trainee is required to develop his/her own research project 

and grant proposal, author a scientific publication, and present findings at professional meetings and 

conferences. Rigorous and periodic assessment of the individual trainee’s progress, as well as a periodic 

evaluation of the training program ensures the development of successful research training providing a 

research foundation that cultivates continual mentorship and provides multidisciplinary research opportunities for trainees to engage in productive careers that benefit the lives of individuals with neuromuscular and neurodevelopmental disorders. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

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Advanced Rehabilitation Research Training Projects 

District of Columbia 

Advanced Rehabilitation Research Training in Neurorehabilitation 

Georgetown University 

Department of Neuroscience Research Building EP09

3970 Reservoir Road NW 

Washington, DC 20007 

bregmanb@georgetown.edu 

www.neuro.georgetown.edu 

Principal Investigator: Barbara S. Bregman, PhD 

Public Contact: 202/687-1452; Fax: 202/687-1617 

Project Number: H133P100015 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: Margaret Campbell, PhD 

NIDRR Funding: FY 10 $150,000; FY 11 $150,000; FY 12 $150,000; FY 13 $150,000; FY 14 

$150,000

Abstract: This project develops a comprehensive training program incorporating hands-on research 

experience within a high-quality laboratory setting for post-doctoral fellows focusing on the recovery 

of function after a central nervous system (CNS) injury. This training program targets individuals with 

advanced rehabilitation-related degrees (physicians, physiatrists, neurologists, neurosurgeons, PhD 

trained physical and occupational therapists, and biomedical engineers). The program co-directors and 

training faculty are experienced mentors and researchers with both clinical and basic science experience 

in nervous system responses to CNS injury and recovery of function. This project promotes interactions 

between basic and clinical research to develop effective interventions and promote functional recovery 

after CNS injuries, such as brain and spinal cord trauma and stroke. Didactic courses provide a firm 

basis in all areas of neuroscience research, including the basic sciences, the clinical aspects of neurological disorders, clinical research methodology, and cutting edge technologies. Participating fellows 

receive formal training through courses, workshops, and seminars covering such topics as scientific 

writing, grant preparation, teaching methodologies, scientific resources and technologies for neuroscience research, and ethics in science and research, with guidance in career opportunities. Additionally, 

participating fellows receive personalized career mentoring and assistance in developing the specific 

skills necessary for a career success. This project’s goal is to provide the strongest possible education for 

early career development of neuroscience rehabilitation researchers while contributing to rehabilitation 

research and improving the quality of life for individuals with spinal cord injury, traumatic brain injury, 

and stroke. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

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Advanced Rehabilitation Research Training Projects 

Illinois 

Advanced Rehabilitation Research Training Project in Rehabilitation Services Research 

Northwestern University 

Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research 

345 East Superior Street 

Chicago, IL 60611-2654 

a-heinemann@northwestern.edu 

www.feinberg.northwestern.edu/ihs/education/fellows 

Principal Investigator: Allen W. Heinemann, PhD 

Public Contact: 312/238-2802; Fax: 312/238-4572 

Project Number: H133P080006 

Start Date: July 01, 2008 

Length: 60 months 

NIDRR Officer: Doris Werwie, PhD 

NIDRR Funding: FY 08 $150,000; FY 09 $150,000; FY 10 $150,000; FY 11 $150,000; FY 12 

$150,000

Abstract: This project provides training to seven post-doctoral fellows as part of the institute-led health 

services training program at Northwestern University. This well-functioning interdisciplinary program 

involves a substantial number of health services research faculty who work closely with one another to 

direct a rigorous and relevant interdisciplinary curriculum for training health services researchers. The 

program includes carefully matched mentors, didactic course work, original research, grant writing, and 

scientific publishing over a two-year program. Seven fellows develop new skills to enhance their previous training in order to pursue a research career in rehabilitation-related health services research. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

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Advanced Rehabilitation Research Training Projects 

Illinois 

Advanced Training in Translational and Transformational Research to Improve Outcomes for 

People with Disabilities 

The Board of Trustees of the University of Illinois 

Disability and Human Development Applied Health Sciences 

1640 West Roosevelt Road 

Chicago, IL 60608-6904 

theller@uic.edu 

Principal Investigator: Tamar Heller, PhD 

Public Contact: 312/413-1467; Fax: 312/996-6942 

Project Number: H133P110004 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Margaret Campbell, PhD 

NIDRR Funding: FY 11 $149,988; FY 12 $149,989; FY 13 $149,826; FY 14 $149,978; FY 15 

$149,987

Abstract: The University of Illinois at Chicago provides an intensive, interdisciplinary postdoctoral 

training program that actively engages scholars in research designed to improve the health, employment, 

and community engagement and participation outcomes for persons with disabilities. This advanced 

training program focuses on sub-populations of persons with disabilities who are most likely to encounter the greatest number of barriers in community life: minorities, persons with intellectual and developmental disabilities, persons with severe physical disabilities, and older adults. The training program 

emphasizes preparing scholars to conduct research that has real world impact (i.e., guiding and changing 

services, programs, organizations, and policies that influence the lives of persons with disabilities). Areas of emphasis include: (1) translational scholarship that uses empirical knowledge to develop, refine, 

and test optimal services and environmental strategies to support these outcomes; and (2) transformational scholarship that employs participatory methodologies that involve stakeholders in the research 

process and directly improve services, programs, organizations, and policies. The postdoctoral training 

program recruits and enrolls seven highly qualified postdoctoral fellows from a variety of disciplines. 

Particular effort is made to recruit postdoctoral trainees with disabilities as well as those from ethnically 

diverse backgrounds. Each trainee completes an intensive advanced training program (average of two 

years) designed to assure acquisition of key skills critical to successful research careers. The training 

program includes: (1) didactic preparation, (2) close mentoring by highly qualified researchers, (3) immersion in ongoing research, and (4) field placement in carefully selected programs or organizations that 

serve the target populations. Each trainee’s program is individually designed to assure that the trainee 

has access to the most rigorous and relevant concepts and research methodologies for his/her chosen 

focus (health promotion, employment, and/or community engagement and participation). The project 

monitors and assures high quality training, and supports trainees to develop capacity to enter productive 

research careers that directly improve services, programs, policies, and societal attitudes toward people 

with disabilities. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

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Advanced Rehabilitation Research Training Projects 

Illinois 

Rehabilitation Sciences for Engineers and Basic Scientists: An Advanced Training Program 

Northwestern University 

Department of Physical Medicine & Rehabilitation

Feinberg School of Medicine

345 East Superior Street, Room 1406 

Chicago, IL 60611 

w-rymer@northwestern.edu 

Principal Investigator: W. Zev Rymer, MD, PhD 

Public Contact: 312/238-3919; Fax: 312/238-2208 

Project Number: H133P110013 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 11 $149,902; FY 12 $149,987; FY 13 $149,947; FY 14 $149,946; FY 15 

$149,968

Abstract: The goal of this program is to increase the number of postdoctoral engineers and scientists 

trained to perform research aimed at solving problems of persons with disabilities. To meet this objective, special attention is given to the following areas of expertise: neurologic disorders, musculoskeletal 

injuries, biomechanics, and prosthetics and orthotics. Targeted technical and scientific training is provided by faculty with relevant technical expertise in multiple departments at Northwestern University. This 

training is coordinated with intensive clinical and scientific instruction, and experience provided by faculty with relevant clinical expertise in multiple departments of the university. Postdoctoral trainees also 

receive training and develop experience in community-based settings. Postdoctoral trainees are recruited 

using regional and national advertising in appropriate engineering and scientific publications, and via 

appropriate web advertising and email list-servers. With the help of national organizations dedicated to 

improving minority participation in science, minority scientists/engineers are recruited to participate in 

the training programs. Similar efforts are made to attract scientists and engineers with disabilities. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

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Advanced Rehabilitation Research Training Projects 

Illinois 

Advanced Rehabilitation Research Training: Interventions for Neurologic 

Communication Disorders 

Northwestern University 

Feinberg School of Medicine

Department of Physical Medicine & Rehabilitation

345 East Superior Street 

Chicago, IL 60611 

lcherney@ric.org 

Principal Investigator: Leora R. Cherney, PhD 

Public Contact: 312/238-1117; Fax: 312/238-2208 

Project Number: H133P120013 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Margaret Campbell, PhD 

NIDRR Funding: FY 12 $149,278; FY 13 $148,077; FY 14 $149,900; FY 15 $149,990; FY 16 

$149,083

Abstract: This training program targets individuals with advanced degrees in communication sciences 

and disorders and related fields, and engages them in rehabilitation research activities designed to address the communication needs of persons with disabilities. The program is structured to provide two 

years of intensive training to four post-doctoral fellows who are committed to a career in rehabilitation 

research. Fellows are supervised by a team of multidisciplinary mentors in a comprehensive program 

that has three major components: (1) didactic training, (2) a mentored clinical experience in stroke, 

traumatic brain injury (TBI), or Parkinson’s disease, and (3) immersion in a research practicum. The 

research practicum includes participation in ongoing research projects, and development and implementation of an independent research project. The capstone experience is the preparation and submission of 

a competitive grant application to an extramural 
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Advanced Rehabilitation Research Training Projects 

Maryland 

University of Maryland Advanced Neuromotor Rehabilitation Research Training (UMANRRT) 

University of Maryland at Baltimore 

School of Medicine 

655 West Baltimore Street 

Baltimore, MD 21201 

mmartinea@som.umaryland.edu 

Principal Investigator: Mark W. Rogers, PhD 

Public Contact: Monica Martinez 410/706-1771

Project Number: H133P100014 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: Margaret Campbell, PhD 

NIDRR Funding: FY 10 $150,000; FY 11 $150,000; FY 12 $150,000; FY 13 $150,000; FY 14 

$150,000

Abstract: The University of Maryland Advanced Neuromotor Rehabilitation Training (UMANRRT) 

program trains post-doctoral fellows in interdisciplinary rehabilitation research with a primary focus 

on neuromuscular disorders including Parkinson’s disease and stroke. The UMANRRT program targets 

doctorally prepared professionals with backgrounds in bioengineering, physical therapy, occupational 

therapy, and the movement sciences. The overall goal of the UMANRRT program is training postdoctoral fellows to further develop and refine the skills needed to conduct high quality, independent, 

interdisciplinary, funded research in the rehabilitation of clinical populations with neuromotor disorders. 

Specific project objectives include: (1) recruiting and selecting highly qualified candidates to become 

UMANRRT post-doctoral fellows; (2) providing a scientifically-based, multidisciplinary training program that includes collaboration among affiliated institutions; (3) providing mentoring and collaborative opportunities with established researchers at University of Maryland at Baltimore and affiliated 

institutions; (4) providing fellows with interdisciplinary neuromotor rehabilitation research leadership 

experience by involving them in research projects where at least one is led by the fellow; (5) providing 

opportunities for participation in presentations, publications, and grant development; and (6) providing 

opportunities to develop teaching and mentoring skills for transitioning to a junior faculty role. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

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Advanced Rehabilitation Research Training Projects 

Massachusetts 

Advanced Research Training Program in Psychiatric Rehabilitation 

Boston University 

Sargent College of Health and Rehabilitation Sciences 

940 Commonwealth Avenue West 

Boston, MA 02215-1303 

zlatka@bu.edu 

www.bu.edu/SARPSYCH 

Principal Investigator: E. Sally Rogers, ScD; Zlatka Russinova, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700 

Project Number: H133P070001 

Start Date: September 01, 2007 

Length: 60 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 07 $149,986; FY 08 $149,994; FY 09 $149,995; FY 10 $149,991; FY 11 

$149,980; FY 12 (No-cost extension through 09/30/2013)

Abstract: This project conducts 2 consecutive cycles of 27-month postdoctoral fellowship in psychiatric 

rehabilitation research, offered to 6 fellows over the course of the project. The recruitment efforts target 

consumers, with the expectation of selecting one or more program participants. In order to optimize the 

training experience, three fellows are in residence during each cycle. While the fellowship is designed 

to provide a broad-based intensive training in psychiatric rehabilitation research, the six fellows develop 

a particular expertise in conducting recovery-oriented research given the current research profile of the 

Center for Psychiatric Rehabilitation at Boston University. Through a variety of training modalities, 

fellows acquire competencies in the following areas: psychiatric rehabilitation and recovery framework, 

consumer advocacy and self-help, research design/methodology, statistics, computer literacy, conduct 

of applied rehabilitation research, and grant and professional writing. The goals of this project are to: 

(1) recruit six individuals with doctoral-level clinical training who are committed to pursuing a career 

in psychiatric rehabilitation research; (2) provide fellows with intensive state-of-the-art didactic experience as well as exposure to collegial collaboration relevant to psychiatric rehabilitation research; (3) 

provide fellows with a research practicum consisting of a mentored participation in an ongoing project 

in psychiatric rehabilitation or recovery; (4) development and implementation of an original pilot study 

and preparation of a grant submission, and publications relevant to each fellow’s area of research interest; and (5) evaluate the overall research training program, including recruitment, didactic training, and 

research practicum. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

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Advanced Rehabilitation Research Training Projects 

Massachusetts 

Post Doctoral Training in Rehabilitation Outcomes Measurement Research 

Trustees of Boston University, BUMC HDRI 

School of Public Health

Health and Disability Research Institute

715 Albany Street; Talbot Building 5 West

Boston, MA 02118 

mslavin@bu.edu 

sph.bu.edu/HDRI/health-and-disability-research-institute/menu-id-617420.html 

Principal Investigator: Alan M. Jette, PhD 617/638-1985 

Public Contact: Mary Slavin, PhD 617/638-1987; Fax: 617/638-1999 

Project Number: H133P120001 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 12 $149,999; FY 13 $149,999; FY 14 $149,999; FY 15 $149,999; FY 16 

$149,999

Abstract: This project addresses a gap in medical rehabilitation residency programs, rehabilitation therapists training programs, and PhD programs in rehabilitation sciences in providing optimal training and 

mentoring in outcome measurement theory and methodology. This post-doctoral fellowship training program helps rehabilitation researchers develop and refine the contemporary outcomes measurement skills 

they will need to conduct high quality, independent rehabilitation research. Participating fellows obtain 

advanced knowledge in contemporary measurement theory and methodology, advanced research design, 

and statistical methods; work as part of a sophisticated research team and under direct supervision from 

an experienced research mentor; write scientific abstracts, presentations, and publications; develop skill 

in the responsible conduct of research and working with consumers; obtain experience in developing and 

presenting scientific presentations; and develop skills in writing research grant applications. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

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Advanced Rehabilitation Research Training Projects 

Michigan 

The UMHS/AACIL Rehabilitation Research Training Program 

University of Michigan 

Department of Physical Medicine and Rehabilitation 

325 East Eisenhower Parkway, Suite 100 

Ann Arbor, MI 48108 

cbouton@umich.edu 

www.med.umich.edu/pmr/edu/arrt.htm 

Principal Investigator: Denise G. Tate, PhD 

Public Contact: Colleen Bouton 734/963-5600; Fax: 734/936-7048 

Project Number: H133P090008 

Start Date: September 01, 2009 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 09 $149,999; FY 10 $149,996; FY 11 $149,788; FY 12 $149,999; FY 13 

$149,996

Abstract: This training program aims to train a team of interdisciplinary researchers, six new PhD fellows and ten MD Resident Physicians, to produce knowledge in rehabilitation research and advanced 

evidence-based practice thus improving the lives of persons with disabilities. This program grew out of 

a long-term collaboration between the University of Michigan Department of Physical Medicine and 

Rehabilitation (PM&R) and the Ann Arbor Center for Independent Living (AACIL) and builds upon 

the successful structures and experiences developed with other departments, schools, and universities. 

Training opportunities include participation in existing research programs funded by NIDRR, the National Institutes of Health, Paralyzed Veterans of America, and at the University of Michigan as well as 

opportunities for conducting research in conjunction with the AACIL. A variety of didactic and practical 

experiences make up this research training program. These include participation in academic courses 

available at the University of Michigan, research seminars, presentations and lectures at meetings and 

national conferences, and an opportunity to work collaboratively on research projects being conducted at 

many sites. Fellows and trainees may select from a focus on three content areas: (1) community participation, including social and environmental factors effecting independent living; (2) health and function; 

and (3) assistive technologies. Cross cutting themes covered in all content areas include health disparities and community needs of underserved populations with disabilities, women’s health, and aging 

with disability. Special efforts are made to recruit and train researchers from racial and ethnic minority 

backgrounds as well as individuals with disabilities. Through this research training experience, fellows 

and PM&R Residents acquire and enhance specific research skills; learn how to collaborate effectively 

across important rehabilitation areas and disciplines; and demonstrate a capacity to apply the results of 

research to the problems of persons with disabilities. The objectives of this research training are: (1) 

to provide training to qualified individuals within a multidisciplinary perspective to evaluate research 

quality and to produce excellence; (2) to orient training toward advancement of science and addressing 

the needs of persons with disabilities through development of evidence-based practice and communitybased participatory research; (3) to prepare researchers to conduct studies in new settings, including 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

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home, schools, and community-based organizations; (4) to foster research skills that result in successful 

research proposals addressing issues relevant to persons with disabilities; and (5) to promote productive partnerships and collaborations that lead to successful careers in areas with a shortage of qualified 

researchers. 
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Advanced Rehabilitation Research Training Projects 

New Jersey 

Advanced Rehabilitation Research Training Center on Neuro-musculoskeletal Rehabilitation 

University of Medicine and Dentistry of New Jersey/New Jersey Medical School (UMDNJ/NJMS) and 

Kessler Medical Rehabilitation Research and Education Center (KMRREC) 

1199 Pleasant Valley Way 

West Orange, NJ 07052 

pbarrance@kesslerfoundation.org 

kesslerfoundation.org/researchcenter/postdoctoralfellowshipprogra m.php 

Principal Investigator: Peter Barrance, PhD 

Public Contact: 973/324-3550; Fax: 973/243-6984 

Project Number: H133P070007 

Start Date: September 01, 2007 

Length: 60 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 07 $149,559; FY 08 $149,847; FY 09 $149,723; FY 10 $149,999; FY 11 

$149,847; FY 12 (No-cost extension through 8/31/2013)

Abstract: This interdisciplinary training program on neuro-musculoskeletal rehabilitation provides 

postdoctoral research opportunities to qualified individuals interested in research, and academic careers 

related to rehabilitation research. Over the course of the program, nine post-doctoral fellows plan, conduct, and disseminate research, and may choose to conduct research in neuro-musculoskeletal rehabilitation. Each fellow conducts rehabilitation research for a two-year term. Anticipated measurable outcomes 

include published research studies, presentations at national scientific meetings, submission of grant 

proposals, completion of research related courses, training in techniques of dissemination, and the development of interdisciplinary research networks. In addition to participation in research activities, each 

fellow completes a series of core courses and directed study on interdisciplinary research, HIPAA, and 

the ethics for the recruitment of human subjects in rehabilitation research. The activities of each postdoctoral fellow are directed and monitored by a fellowship mentor with a demonstrated ability to implement, conduct, and disseminate the results of research investigations contributing to the advancement of 

rehabilitation science. Core faculty involved in the program represent departments/divisions of physical 

therapy, occupational therapy, rehabilitation science, biomedical engineering, biomechanics, computer 

science, and mechanical-aerospace engineering. The goal of this project is to provide young investigators a stimulating environment, with an atmosphere of enthusiasm tempered by rigorous methodology 

that instills the desire to improve the everyday lives of persons with disabilities. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

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Advanced Rehabilitation Research Training Projects 

New Jersey 

Advanced Rehabilitation Research Training Center on Neurocognitive Rehabilitation 

University of Medicine and Dentistry of New Jersey/New Jersey Medical School (UMDNJ/NJMS) and; 

Kessler Medical Rehabilitation Research and Education Center (KMRREC) 

1199 Pleasant Valley Way 

West Orange, NJ 07052 

nchiaravalloti@kesslerfoundation.org 

kesslerfoundation.org/researchcenter/postdoctoralfellowshipprogra m.php 

Principal Investigator: Nancy D. Chiaravalloti, PhD 973/530-3640 

Public Contact: 973/530-3600; Fax: 973/736-7886 

Project Number: H133P090009 

Start Date: July 01, 2009 

Length: 60 months 

NIDRR Officer: Leslie J. Caplan, PhD 

NIDRR Funding: FY 09 $149,689; FY 10 $149,995; FY 11 $149,689; FY 12 $149,995; FY 13 

$149,689

Abstract: The Advanced Rehabilitation Research Training Center (ARRT) on Neurocognitive Rehabilitation provides young scientists with the multidisciplinary skills necessary to continue to advance 

the scientific knowledge of neurological illness and injury, its impact on everyday life, vocational functioning, and brain functioning, and effective means of identifying new rehabilitation interventions. This 

is accomplished by providing multiple training opportunities for scientists and clinicians in clinicallyfocused rehabilitation research. The ARRT supports the training of post-doctoral fellows in neuropsychology, cognitive neuroscience, outcomes, and clinical rehabilitation. The program provides advanced 

multidisciplinary rehabilitation research and training opportunities for clinical researchers including: 

(1) clinically trained PhD specialists (e.g. neuropsychologists, rehabilitation psychologists), (2) MD 

specialists in psychiatry or behavioral neurology, and (3) non-clinical cognitive neuroscientists with a 

commitment to conduct clinical rehabilitation research. The training program is based on an Individualized Research Training Plan designed by the trainee in close collaboration with his/her mentors. Training activities: (1) are relevant to the fellow’s strengths, weaknesses, and interests; (2) provide guidance, 

mentoring, and technical knowledge; (3) develop fellows and independent researchers; and (4) lead to 

the publication of research findings. 
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Advanced Rehabilitation Research Training Projects 

New York 

Mt. Sinai Advanced Rehabilitation Research Training 

Mount Sinai School of Medicine 

Department of Rehabilitation Medicine 

One Gustave L. Levy Place, Box 1240 

New York, NY 10029-6574 

theodore.tsaousides@mssm.edu 

www.mssm.edu/tbinet 

Principal Investigator: Theodore Tsaousides, PhD 

Public Contact: 212/241-6547; Fax: 212/348-5901 

Project Number: H133P100016 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 10 $142,046; FY 11 $138,302; FY 12 $142,646; FY 13 $147,163; FY 14 

$149,970

Abstract: The Mt. Sinai Advanced Rehabilitation Research Training program increases the number 

of well-trained clinical rehabilitation research in the areas of traumatic brain injury and spinal cord 

injury. Project objectives include: (1) attracting well-qualified candidates from minority and disability 

backgrounds and from diverse social science fields into the field of rehabilitation research, (2) increasing knowledge of rehabilitation research methods through didactics and participation in professional 

development activities, (3) enhancing research capacity by completing independent research projects 

locally or in collaboration with other institutions, (4) increasing involvement in consumer-related experiences, (5) improving presentation abilities to both professionals and consumers, (6) increasing scientific writing abilities through collaboration with faculty on proposal writing and preparation of research 

findings for submission to peer-reviewed journals, (7) increasing knowledge of funding mechanisms 

and development of competitive grant applications to funding agencies, and (8) enhancing vocational 

preparation through supervised training of mentoring research activities of trainees in earlier stages of 

training. A two-year postdoctoral fellowship is offered to five qualified applicants over the course of 

five years. Training activities are classified under three modules: (1) didactics (including seminars and 

conferences), (2) hands-on participation in research (including participation in ongoing research at the 

Brain Injury Research Center and development of independent projects), and (3) mentoring (including 

individual and research team). The training in research capacity building is enhanced through collaboration with other institutions. Trainees devote 80 percent of their time to research and 20 percent of their 

time to clinical activities. Two-way evaluations are conducted every six months. Objective performance 

indicators are used to assess the project success. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-32

Advanced Rehabilitation Research Training Projects 

New York 

Rush Advanced Rehabilitation Research Training Postdoctoral Fellowship 

New York University School of Medicine 

Rusk Institute of Rehabilitation Medicine

Ambulatory Care Center

240 East 38th Street; Floor 17, Room 17093

New York, NY 10016 

teresa.ashman@nyumc.org 

Principal Investigator: Teresa Ashman, PhD 

Public Contact: 212/263-6164

Project Number: H133P120011 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: A. Cate Miller, PhD 

NIDRR Funding: FY 12 $149,994; FY 13 $149,866; FY 14 $149,995; FY 15 $149,993; FY 16 

$149,998

Abstract: This project trains post-doctoral fellows in skills necessary to become independent investigators in clinical rehabilitation research. Doctoral level professionals from appropriate psychology fields 

of study (i.e., rehabilitation, health, neuropsychology, counseling) receive training through mentored 

independent research projects (IRPs) and ongoing multidisciplinary research projects. In addition to 

expanding their research expertise, fellows increase their knowledge of participatory action research 

(PAR) through collaborations with consumer disability advocacy groups, PAR-focused seminars, and 

partnership with a consumer whose disability is the focus of the fellow’s IRP. By completion of training, fellows are expected to complete a minimum of one IRP, participate on a minimum of one ongoing 

collaborative research project, present research results to professional and consumer groups, submit 

findings for publication in peer-reviewed journals, and participate in writing extramural grant proposals, 

including their own grant applications. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-33

Advanced Rehabilitation Research Training Projects 

Pennsylvania 

Career Advancement for Engineers in the Science of Rehabilitation (CAESOR) 

University of Pittsburgh 

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology 

4020 Forbes Tower 

Pittsburgh, PA 15260 

mrh35@pitt.edu 

Principal Investigator: Dan Ding, PhD 

Public Contact: Mary Goldberg, CAESOR Coordinator 412/954-5287; Fax: 412/954-5340 

Project Number: H133P090010 

Start Date: October 01, 2009 

Length: 60 months 

NIDRR Officer: Shelley Reeves 

NIDRR Funding: FY 09 $149,972; FY 10 $149,962; FY 11 $149,971; FY 12 $149,952; FY 13 

$149,966

Abstract: The goal of the Career Advancement for Engineers in the Science of Rehabilitation (CAESOR) program is to increase the number of rigorously trained, extramurally competitive, and scientifically productive engineering researchers in the field of rehabilitation science and engineering. To that 

end, CAESOR provides two years of advanced rehabilitation research training for eight to ten highly 

qualified postdoctoral trainees from basic engineering disciplines who are committed to a career in 

rehabilitation research. CAESOR utilizes a rehabilitation research team consisting of a focused cadre of 

mentors with interdisciplinary expertise in engineering, clinical, and psychosocial disciplines to provide the trainees with balanced exposure to research, clinical, and academic approaches to rehabilitation 

and disability issues. The comprehensive training provides: (1) immersion in a mentored rehabilitation 

research experience by matching postdoctoral trainees with highly successful research mentors; (2) 

complementary didactics including core and individualized components that teach and enhance the critical skills necessary for a successful research career (such as grant writing, ethics, and issues in human 

subject research), and topics that are not usually covered in traditional engineering curricula (such as 

medical and social aspects of disability, research methods, and statistical analysis); (3) involvement in 

mentored clinical experience to gain clinical insights and better understanding of clinical decision making process; and (4) participation in a community practicum to understand the real user needs and contextual constraints of technology. The capstone experience for the postdoctoral trainees is the submission 

of an extramural research proposal. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-34

Advanced Rehabilitation Research Training Projects 

Texas 

Interdisciplinary Rehabilitation Research Training Program 

University of Texas Medical Branch 

301 University Boulevard 

Galveston, TX 77555-1137 

bacammar@utmb.edu 

Principal Investigator: Kenneth J. Ottenbacher, PhD 

Public Contact: Beth Cammarn 409/747-1637; Fax: 409/747-1638 

Project Number: H133P110012 

Start Date: October 01, 2011 

Length: 60 months 

NIDRR Officer: Margaret Campbell, PhD 

NIDRR Funding: FY 11 $149,999; FY 12 $149,999; FY 13 $149,999; FY 14 $149,999; FY 15 

$149,999

Abstract: The Interdisciplinary Rehabilitation Research Training Program provides postdoctoral research opportunities to qualified individuals interested in academic and clinical careers related to disability, rehabilitation, and recovery. Postdoctoral fellows plan, conduct, and disseminate research involving 

rehabilitation outcomes with a focus on older persons with disabilities and chronic disease. The research 

is accomplished in collaboration with an interdisciplinary team focusing in one of the following areas: 

muscle biology of rehabilitation, clinical and community rehabilitation, and population-based health 

services rehabilitation. Each postdoctoral fellow identifies a primary mentor who is a member of one 

of three research teams, and has an established research program and a record of external funding. The 

trainee and mentor develop an individualized career development plan. The plan includes a core curriculum of formal (credit bearing) and informal learning experiences, seminars, and workshops that 

are completed by all the fellows. The career development plan includes a series of learning activities 

directly related to the trainees’ area of research focus. Outcomes include published research studies, 

presentations at national scientific meetings, submission of grant proposals, training in methods of dissemination, and participation in interdisciplinary research networks. The activities of each postdoctoral 

fellow are monitored by the primary mentor and members of the research team. All trainees complete a 

community-based practicum experience that includes structured opportunities to interact with health care 

providers and consumers in a community context. Fellows also have the opportunity to earn a Master’s 

in Public Health degree as part of the postdoctoral training program. Finally, the fellows are assisted by 

program faculty in identifying and securing professional positions providing the opportunity to conduct 

and disseminate the results of research advancing rehabilitation science and evidence-based practice. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-35

Advanced Rehabilitation Research Training Projects 

Texas 

Advanced Rehabilitation Research Training 

Baylor College of Medicine 

Department of Physical Medicine and Rehabilitation 

One Baylor Plaza, Room 600d 

Houston, TX 77030 

fchiou@bcm.tmc.edu 

www.bcm.edu/pmr/education/index.cfm?pmid=5648 

Principal Investigator: Faye C. Tan, MD; Angelle M. Sander, PhD

Public Contact: 713/873-3875; Fax: 713/873-3874 

Project Number: H133P080007 

Start Date: July 01, 2008 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 08 $150,000; FY 09 $150,000; FY 10 $150,000; FY 11 $150,000; FY 12 

$150,000

Abstract: The purpose of this program is to train post-doctoral fellows in the skills necessary to become 

independent investigators in rehabilitation. Fellows must be competent in each major facet of the research process: problem identification, analysis of the current state of knowledge, hypothesis generation 

based on familiarity with applicable theory, research project design, mastery of relevant techniques and 

instrumentation, statistical analysis, interpretation of findings, and preparation of technical reports and 

publications. Through this program, fellows develop research expertise in one of two potential training tracks: (1) traumatic brain injury/stroke or (2) spinal cord injury. For each track, the International 

Classification of Functioning, Disability and Health (ICF) cell-to-society model has been applied so 

that the fellow can select from any portion of the spectrum for his/her area of research focus. Mentors 

for this program develop an individualized training plan for each fellow that includes: (1) participation 

in research projects of the primary and secondary mentors, (2) development and implementation of an 

independent research project, and (3) required didactic course work drawn from the Baylor College of 

Medicine Fundamentals of Clinical Investigation within the Clinical Scientist Training Program (K-30) 

and the Department of Physical Medicine and Rehabilitation. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-36

Advanced Rehabilitation Research Training Projects 

Virginia 

Advanced Research Training Program in Neurobehavioral Recovery and Intervention 

Virginia Commonwealth University 

Department of Physical Medicine and Rehabilitation 

Box 980542 

Richmond, VA 23298-0542 

jskreutz@vcu.edu 

www.pmr.vcu.edu/programs/neuropsychology/arrt_fellowship.aspx 

Principal Investigator: Jeffrey S. Kreutzer, PhD 804/828-9055 

Public Contact: Nancy H. Hsu, PsyD 804/828-8794; Fax: 804/828-2378 

Project Number: H133P090013 

Start Date: September 01, 2009 

Length: 60 months 

NIDRR Officer: Kenneth D. Wood, PhD 

NIDRR Funding: FY 09 $148,985; FY 10 $149,475; FY 11 $148,895; FY 12 $149,404; FY 13 

$149,404

Abstract: This project is an advanced rehabilitation research training (ARRT) program for individuals 

with advanced degrees who are committed to a career in rehabilitation research with a focus on neurobehavioral recovery and intervention. Training and research activities address brain injury, aneurysms, 

brain tumors, and other neurological disorders. Individualized research training plans emphasizing scientific rigor guide fellows’ choices of training activities. Outstanding mentors, didactic experiences, and 

collaborative and independent research activities provide the foundation for the Virginia Commonwealth 

University ARRT program. Mentors include internationally and nationally renowned, distinguished scientists from the fields of rehabilitation medicine, neuropsychology, psychiatry, neurosurgery, and vocational rehabilitation. Core courses on ethics, conduct in scientific research, and grant writing are complemented by grand rounds and graduate courses. All fellows must complete and submit a grant application 

during the second year of their fellowship. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-37

Advanced Rehabilitation Research Training Projects 

Washington 

University of Washington Advanced Rehabilitation Research Training 

University of Washington 

Department of Rehabilitation Medicine 

1959 NE Pacific Street

Box 356490 

Seattle, WA 98195-6490 

Principal Investigator: Kurt Johnson, PhD; Deborah Kartin, PT, PhD

Public Contact: 206/598-5338; Fax: 206/685-3244 

Project Number: H133P080008 

Start Date: July 01, 2008 

Length: 60 months 

NIDRR Officer: Theresa San Agustin, MD 

NIDRR Funding: FY 08 $149,491; FY 09 $149,411; FY 10 $149,494; FY 11 $149,997; FY 12 

$149,652

Abstract: The University of Washington Advanced Rehabilitation Research Training program (UWARRT) provides advanced rehabilitation research training for five to six highly qualified postdoctoral 

trainees to enable them to become successful rehabilitation researchers, and to conduct formative and 

summative evaluation of the training. UW-ARRT focuses on development of rehabilitation researchers 

with emphasis on design and implementation of rehabilitation research, dissemination of research, and 

grant writing. The comprehensive training program provides: (1) immersion in a mentored rehabilitation 

research experience by matching postdoctoral trainees with highly successful rehabilitation researchers, 

and (2) complementary didactics (core and individualized) to support trainees’ development as rehabilitation researchers. Core curriculum is built on an on-going bimonthly seminar specifically designed to: 

(1) teach and enhance the critical skills necessary for a successful research career (a general research 

skills seminar to be held once/month), and (2) provide for interaction among trainees interested in developing successful research careers in rehabilitation sciences and an interdisciplinary cohort of mentors/

advisors who have active and successful rehabilitation sciences research programs. The individualized 

didactic curriculum allows a postdoctoral trainee to enroll, as needed, in additional coursework in research methods, statistical analysis, and rehabilitation science. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-38

Advanced Rehabilitation Research Training Projects 

Washington 

Advanced Training on Outcomes in Rehabilitation Research (UW-ATORR) 

University of Washington Office of Research 

Department of Rehabilitation Medicine 

1959 NE Pacific Street

Box 356490

Seattle, WA 98195 

dagmara@uw.edu 

www.uwcore.washington.edu 

Principal Investigator: Dagmar Amtmann, PhD 

Public Contact: 206/543-4741; Fax: 206/685-9224 

Project Number: H133P120002 

Start Date: October 01, 2012 

Length: 60 months 

NIDRR Officer: Dawn Carlson, PhD, MPH 

NIDRR Funding: FY 12 $149,997; FY 13 $147,559; FY 14 $149,999; FY 15 $149,999; FY 16 

$149,998

Abstract: This program provides unique opportunities for rehabilitation researchers to acquire and 

apply modern psychometric techniques and for researchers trained in modern psychometric theory to 

develop expertise in rehabilitation and physical medicine. Post-doctoral trainees receive two years of advanced training that includes: (1) immersion in a mentored rehabilitation research experience, matching 

post-doctoral trainees with highly successful rehabilitation researchers; and (2) complementary didactics 

(core and individualized) to support trainee development. The overall goal of this project is to advance 

research capacity in rehabilitation research by providing researchers with training and mentoring opportunities that facilitate better outcomes measurement in rehabilitation research. Researchers with training 

in both rehabilitation and outcomes measurement are best positioned to develop, test, and evaluate psychometrically sound and clinically meaningful outcomes, translate research into practice, identify gaps 

in evidence that most affect people with disabilities, examine the prognostic information available to 

patients and providers, and examine behaviors, lifestyles, and choices within people’s control that may 

affect their health outcomes. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-39

Advanced Rehabilitation Research Training Projects 

Wisconsin 

Advanced Rehabilitation Research Training in Pediatric Mobility 

Marquette University 

Orthopaedic and Rehabilitation Engineering Center 

735 North 17th Street

PO Box 1881 

Milwaukee, WI 53201 

depps@mcw.edu 

www.orec.org 

Principal Investigator: Gerald F. Harris, PhD 414/288-1586 

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713 

Project Number: H133P080005 

Start Date: September 01, 2008 

Length: 60 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 08 $150,000; FY 09 $150,000; FY 10 $150,000; FY 11 $150,000; FY 12 

$150,000

Abstract: The goal of this project is to develop in-depth expertise, enthusiasm, and productivity in rehabilitation research to increase the number of physicians and engineers qualified to conduct independent, 

transdisciplinary research on problems related to disability, rehabilitation, and pediatric mobility. The 

program is specifically designed to give postdoctoral trainees the skills needed to become productive, 

independent rehabilitation researchers. The research component of the training program consists of three 

mentorship teams capable of providing a 20 to 25 percent support effort on a continued basis. Qualified 

trainees are enrolled in the research training program for 24 to 36 months. Three research areas (RAs) 

support opportunities for career oriented contributions to the field of pediatric mobility. The RAs are 

Skeletal and Connective Tissue Biology, Assistive Devices, and Foot and Ankle Mobility. Fellowship research requirements include pilot study completion and refinement, multiple journal article submissions, 

and completion of extramural proposal(s). The capstone experience for the postdoctoral trainees is the 

completion of a sponsored workshop in their field of study with nationally recognized leaders in attendance. A team of mentors with qualifications specific to each of these RAs support candidates entering 

the program to enhance their current skills and offer additional, high level training and experience. 
NIDRR Program Directory FY 2012 - Capacity Building for Rehabilitation Research and Training

8-40

Advanced Rehabilitation Research Training Projects 

Wisconsin 

Advanced Rehabilitation Research Training (ARRT) in Pediatric to Adult Transition 

Marquette University 

Orthopaedic and Rehabilitation Engineering Center 

735 North 17th Street

PO Box 1881 

Milwaukee, WI 53201 

depps@mcw.edu 

www.orec.org 

Principal Investigator: Gerald F. Harris, PhD 414/288-0698 

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713 

Project Number: H133P100008 

Start Date: October 01, 2010 

Length: 60 months 

NIDRR Officer: Thomas Corfman 

NIDRR Funding: FY 10 $150,000; FY 11 $150,000; FY 12 $150,000; FY 13 $150,000; FY 14 

$150,000

Abstract: This project provides advanced education and training in rehabilitation research to selected 

engineers and clinician researchers with a background and interest in rehabilitation medicine. Participating fellows develop in-depth expertise, enthusiasm, and productivity in rehabilitation research with 

experience in community-based research settings and with organizations representing individuals with 

disabilities with the fundamental goal of training individuals to become career researchers. The program is structured to support post-doctoral physicians, engineers, physical therapists, and psychologists 

who seek advanced rehabilitation research training. This program offers directed mentorship, research 

training, and formal didactic components, and includes a cross-disciplinary course structure for all fellows. Three research areas (RAs) support opportunities for career oriented contributions to the field of 

pediatric to adult transition. These RAs include: Function and Outcomes Assessment, Biomaterials and 

Skeletal Biology, and Motion and Mobility. A team of mentors with qualifications specific to each of 

these RAs support candidates entering the program to enhance their current skills and offer additional 

high level training and experience. Trainees attend courses, symposia, and seminars in four in-depth 

areas, including Evidence Based Research, Scientific Writing and Grantsmanship, Biostatistics and 

Outcomes Assessment, and Motion and Mobility Analysis. At the completion of the program all trainees 

are expected to have completed necessary pilot work, written and submitted several journal manuscripts, 

prepared two extramural proposals, and gained experience in managing a functional research team. The 

program also includes support for career planning and job search assistance. 
Subject Index

No subject index was created for this version of the NIDRR Program Directory. The Directory remains 

in database format at www.naric.com. This format is considerably more effective for subject-oriented 

organization of the material in the Directory.

For assistance in searching the Program Directory database, contact the staff at NARIC at 800/346-2742 

or email jchaiken@heitechservices.com
Grantees

Grantees

B-3

AbleLink Technologies, Inc. H133S120010 Colorado Springs, CO 3-59

AbleLink Technologies, Inc. H133S120062 Colorado Springs, CO 3-72

Advanced Medical Electronics 

Corporation H133S120017 Maple Grove, MN 3-65

Albert Einstein Healthcare Network H133A070040 Elkins Park, PA 2-64

Albert Einstein Healthcare Network H133A120037 Elkins Park, PA 2-65

American Institutes for Research H133A110004 Washington, DC 6-6

Aspen Systems, Inc. H133S100088 Marlborough, MA 3-75

Assistech Systems, LLC H133S110051 Eugene, OR 4-43

AventuSoft LLC H133S120026 Sunrise, FL 3-61

Barbara M. Doucet, PhD H133F120032 Galveston, TX 8-16

Baylor College of Medicine H133G120192 Houston, TX 3-51

Baylor College of Medicine H133P080007 Houston, TX 8-35

Baylor Research Institute H133A120098 Dallas, TX 2-66

Boston University H133B090014 Boston, MA 1-5

Boston University H133G090046 Boston, MA 4-24

Boston University H133G120117 Boston, MA 4-27

Boston University H133P070001 Boston, MA 8-25

Boston University Medical Center H133N120002 Boston, MA 2-36

Carnegie Mellon University H133E080019 Pittsburgh, PA 3-16

Carolinas HealthCare System H133A070042 Charlotte, NC 2-61

Carolinas HealthCare System H133A080035 Charlotte, NC 2-14

Charmtech Labs, LLC H133S120055 Cupertino, CA 3-70

Charmtech Labs, LLC H133S120067 Cupertino, CA 3-69

Chicago House and Social Service 

Agency H133G110108 Chicago, IL 1-27

Children’s Hospital Medical Center H133B090010 Cincinnati, OH 2-6

Children’s Healthcare of Atlanta, Inc. H133G110109 Atlanta, GA 4-19

Children’s Hospital Medical Center H133G060167 Cincinnati, OH 4-34

Christian N. Shenouda H133F110028 Bethesda, MD 8-14

Colleen A. Thoma H133F110042 Midlothian, VA 8-7

Colorado State University H133G100197 Fort Collins, CO 4-18

Cornell University H133A110020 Ithaca, NY 7-4

Cornell University H133B100017 Ithaca, NY 1-12

Cornell University H133G110219 Ithaca, NY 1-34

Craig Hospital H133A110006 Englewood, CO 2-46

Craig Hospital H133A120032 Englewood, CO 2-48

Craig Hospital H133G090013 Englewood, CO 2-75

Craig Hospital H133N110006 Englewood, CO 2-29

Curators of the University of 

Missouri-on behalf of UMKC H133G120071 Kansas City, MO 1-29

Dartmouth College H133A080063 Lebanon, NH 8-4

Duke University H133E080011 Durham, NC 3-14

Duke University H133G120070 Durham, NC 4-33

Easter Seals Wisconsin, Inc. H133G100195 Madison, WI 3-53

Eastern Kentucky University H133G110190 Richmond, KY 4-23

Engineering Acoustics, Inc. H133S120033 Casselberry, FL 3-60
Grantees

B-4

Farus, LLC H133S110053 Mountain View, CA 3-71

Flint Rehabilitation Devices, LLC H133S120032 Irvine, CA 3-57

Flint Rehabilitation Devices, LLC H133S120037 Irvine, CA 3-56

Gallaudet University H133E080006 Washington, DC 3-6

Gallaudet University H133G060065 Washington, DC 3-25

Georgetown University H133P100015 Washington, DC 8-19

Georgia Institute of Technology H133A120120 Atlanta, GA 1-14

Georgia Institute of Technology H133E070026 Atlanta, GA 3-7

Georgia Institute of Technology H133E080003 Atlanta, GA 3-8

Georgia Institute of Technology H133E110002 Atlanta, GA 3-9

Georgia Tech Research Corporation H133G120204 Atlanta, GA 3-30

HeiTech Services, Inc. ED-OSE-10-0074 Landover, MD 6-15

ICF International ED-04-CO-0018/

0007 Silver Spring, MD 6-16

Indiana University H133A120035 Indianapolis, IN 2-51

Innovative Design Labs, Inc. H133S120034 Minneapolis, MN 3-66

Institute for Human Centered 

Design, Inc. H133A110028 Boston, MA 7-3

Ivan R. Molton, PhD H133F110019 Seattle, WA 8-8

Jennifer M. Devine H133F110027 Boston, MA 8-15

JFK Johnson Rehabilitation Institute H133A070030 Edison, NJ 2-56

Johns Hopkins School of Medicine H133A070045 Baltimore, MD 2-21

Kacey Maestas H133F120013 Houston, TX 8-17

Kent State University H133G080158 Kent, OH 4-36

Kessler Foundation H133A070037 West Orange, NJ 2-57

Kessler Foundation H133A120030 West Orange, NJ 2-58

Kessler Foundation H133B120005 West Orange, NJ 1-11

Kessler Foundation H133B120006 West Orange, NY 5-3

Kessler Foundation H133G080136 West Orange, NJ 3-45

Kessler Foundation H133G090078 West Orange, NJ 2-82

Kessler Foundation, Inc. H133G120203 West Orange, NJ 3-46

Kessler Medical Rehabilitation 

Research and Education Corporation 

(KMRREC) H133N110020 West Orange, NJ 2-38

Koronis Biomedical Technologies 

Corporation H133S110049 Maple Grove, MN 3-78

Koronis Biomedical Technologies 

Corporation H133S110050 Maple Grove, MN 3-77

Koronis Biomedical Technologies 

Corporation H133S120039 Maple Grove, MN 3-64

Liberating Technologies, Inc. H133S120006 Holliston, MA 3-62

Liberating Technologies, Inc. H133S120013 Holliston, MA 3-63

LINC Design LLC H133S120005 Verona, PA 3-68

Los Amigos Research and 

Education Institute H133G100268 Downey, CA 3-22

Lucy A. Bilaver H133F120019 Chicago, IL 8-11

Mansha Parven Q. Mirza H133F120024 Chicago, IL 8-13
Grantees

B-5

Margaret K. Glenn, EdD H133F120031 Morgantown, WV 8-9

Marquette University H133E100007 Milwaukee, WI 3-20

Marquette University H133G120256 Milwaukee, WI 3-55

Marquette University H133P080005 Milwaukee, WI 8-39

Marquette University H133P100008 Milwaukee, WI 8-40

Mayo Clinic H133A070013 Rochester, MN 2-54

Mayo Clinic H133A120026 Rochester, MN 2-55

Medical University of South Carolina H133A080064 Charleston, SC 8-5

Medical University of South Carolina H133A120122 Charleston, SC 1-21

Medical University of South Carolina H133B090005 Charleston, SC 2-7

Medical University of South Carolina H133G090059 Charleston, SC 2-85

Medical University of South Carolina H133G110157 Charleston, SC 2-86

MedStar Health Research Institute H133B090002 Washington, DC 2-4

Meeting the Challenge, Inc. H133A110018 Colorado Springs, CO 7-10

Mississippi State University H133B100022 Mississippi State, MS 1-8

Motion Control, Inc. H133S100080 Salt Lake City, UT 3-80

Mount Sinai School of Medicine H133A080053 New York, NY 2-13

Mount Sinai School of Medicine H133A120084 New York, NY 2-59

Mount Sinai School of Medicine H133P100016 New York, NY 8-31

National Public Radio H133G090139 Washington, DC 3-26

National Rehabilitation Hospital H133G100174 Washington, DC 3-27

New York University School of 

Medicine H133A120100 New York, NY 2-60

New York University School of 

Medicine H133G120262 New York, NY 3-47

New York University School of 

Medicine H133P120011 New York, NY 8-32

Northeastern University H133G100187 Boston, MA 4-25

Northern Illinois University H133G110122 Sycamore, IL 3-39

Northwestern University H133E080009 Chicago, IL 3-11

Northwestern University H133G100208 Chicago, IL 3-33

Northwestern University H133G110245 Chicago, IL 3-35

Northwestern University H133G110266 Chicago, IL 3-34

Northwestern University H133G120287 Chicago, IL 3-37

Northwestern University H133P080006 Chicago, IL 8-20

Northwestern University H133P110013 Chicago, IL 8-22

Northwestern University H133P120013 Chicago, IL 8-23

Ohio Valley Center for Brain Injury 

Prevention and Rehabilitation H133A070029 Columbus, OH 2-62

Ohio Valley Center for Brain Injury 

Prevention and Rehabilitation H133A120086 Columbus, OH 2-63

Oregon Health and Science University H133G110083 Portland, OR 2-84

Oregon State University H133G090242 Corvallis, OR 3-48

OrthoCare Innovations, LLC H133S100094 Oklahoma City, OK 3-79

Pennsylvania State University H133G100234 University Park, PA 1-35

Portland State University H133B090019 Portland, OR 4-10

Portland State University H133G080132 Portland, OR 4-38
Grantees

B-6

Portland State University H133G100237 Portland, OR 4-40

Public Health Institute H133A110024 Oakland, CA 41101

Rancho Los Amigos National 

Rehabilitation Center H133N110018 Downey, CA 2-28

Regents of the University of 

California H133G100072 Los Angeles, CA 3-23

Regents of the University of 

California at Davis H133P110005 Davis, CA 8-18

Regents of the University of 

Michigan H133G100118 Ann Arbor, MI 3-44

Regents of the University of 

Minnesota H133G120090 Minneapolis, MN 4-29

Rehabilitation Institute of Chicago 

(RIC) H133A080045 Chicago, IL 2-50

Rehabilitation Institute of Chicago 

(RIC) H133B080031 Chicago, IL 2-5

Rehabilitation Institute of Chicago 

(RIC) H133B090024 Chicago, IL 6-3

Rehabilitation Institute of Chicago 

(RIC) H133E070013 Chicago, IL 3-10

Rehabilitation Institute of Chicago 

(RIC) H133E120010 Chicago, IL 3-12

Rehabilitation Institute of Chicago 

(RIC) H133G090093 Chicago, IL 2-77

Rehabilitation Institute of Chicago 

(RIC) H133G100107 Chicago, IL 3-32

Rehabilitation Institute of Chicago 

(RIC) H133G100182 Chicago, IL 6-12

Rehabilitation Institute of Chicago 

(RIC) H133G120059 Chicago, IL 3-36

Rehabilitation Institute of Chicago 

(RIC) H133N060014 Chicago, IL 2-32

Rehabilitation Institute of Chicago 

(RIC) H133N110014 Chicago, IL 2-33

Rehabilitation Institute Research 

Corporation H133G120123 Chicago, IL 4-20

San Francisco State University H133A090020 San Francisco, CA 3-21

Santa Clara Valley Medical Center 

(SCVMC) H133A070038 San Jose, CA 2-45

Sean P. Deeny, PhD H133F120017 Chicago, IL 8-12

SEDL H133A080007 Austin, TX 1-22

SEDL H133A100026 Austin, TX 6-10

SEDL H133A120012 Austin, TX 6-11

Sendero Group, LLC H133G100135 Roseville, CA 3-24

Sendero Group, LLC H133S120016 Roseville, CA 3-58

Shepherd Center, Inc. H133N110005 Atlanta, GA 2-31

Soar Technology, Inc. H133S110048 Ann Arbor, MI 3-76
Grantees

B-7

Spaulding Rehabilitation Hospital H133A120034 Boston, MA 2-22

Spaulding Rehabilitation Hospital H133A120085 Boston, MA 2-52

Spaulding Rehabilitation Hospital H133N110010 Boston, MA 2-35

State University of New York (SUNY) 

at Buffalo H133G120081 Buffalo, NY 2-83

Syracuse University H133A060033 Syracuse, NY 1-19

Syracuse University H133A090004 Syracuse, NY 1-20

Syracuse University H133A110021 Atlanta, GA 7-6

Syracuse University H133G100226 Syracuse, NY 4-31

Temple University H133B100037 Philadelphia, PA 4-11

The Board of Regents of the 

University of Wisconsin System H133B100034 Madison, WI 1-13

The Board of Trustees of the 

University of Illinois H133P110004 Chicago, IL 8-21

The George Washington University H133G120272 Washington, DC 3-28

The Institute for Rehabilitation and 

Research (TIRR) H133A070043 Houston, TX 2-67

The Institute for Rehabilitation and 

Research (TIRR) H133A110027 Houston, TX 7-8

The Institute for Rehabilitation and 

Research (TIRR) H133A120008 Houston, TX 7-13

The Institute for Rehabilitation and 

Research (TIRR) H133A120020 Houston, TX 2-68

The Institute for Rehabilitation and 

Research (TIRR) H133B090023 Houston, TX 4-12

The Institute for Rehabilitation and 

Research (TIRR) H133N060003 Houston, TX 2-41

The Ohio State University H133A080023 Columbus, OH 2-15

The Research Foundation of SUNY 

on behalf of the University at Buffalo H133A100021 Buffalo, NY 6-9

The Sandbox Learning Company H133S120002 Charlotte, NC 3-67

The Smith-Kettlewell Eye Research I

nstitute H133E110004 San Francisco, CA 3-4

The University of Alabama at 

Birmingham H133A120102 Birmingham, AL 4-15

The University of Alabama at 

Birmingham H133E120005 Birmingham, AL 3-3

The University of Kansas H133B060018 Lawrence, KS 4-5

The University of Kansas H133B110006 Lawrence, KS 4-6

The University of Kansas H133G090222 Lawrence, KS 4-22

The University of Texas 

Southwestern Medical Center H133A070024 Dallas, TX 2-23

The University of Texas 

Southwestern Medical Center H133A120090 Dallas, TX 2-24

Thomas Jefferson University H133N110021 Philadelphia, PA 2-39

Through the Looking Glass H133A080034 Berkeley, CA 4-13

Through the Looking Glass H133A110009 Berkeley, CA 4-14
Grantees

B-8

Towson University H133G120030 Towson, MD 5-6

TransCen, Inc. H133A100007 Rockville, MD 1-15

TransCen, Inc. H133A110017 Rockville, MD 7-5

Trustees of Boston University H133B100003 Boston, MA 4-7

Trustees of Boston University H133G120091 Boston, MA 4-26

Trustees of Boston University, 

BUMC HDRI H133P120001 Boston, MA 8-26

Trustees of Dartmouth College H133A120164 Lebanon, NH 1-17

Trustees of Dartmouth College H133G100110 Lebanon, NH 1-32

Trustees of Dartmouth College H133G110161 Lebanon, NH 1-33

University at Buffalo, The State 

University of New York H133A080050 Amherst, NY 6-7

University at Buffalo, The State 

University of New York H133E100002 Buffalo, NY 3-13

University of Alabama at Birmingham H133A060039 Birmingham, AL 6-4

University of Alabama at Birmingham H133A070039 Birmingham, AL 2-43

University of Alabama at Birmingham H133A110002 Birmingham, AL 6-5

University of Alabama at Birmingham H133A120096 Birmingham, AL 2-44

University of Alabama at Birmingham H133G120237 Birmingham, AL 2-72

University of Alabama at Birmingham H133G120297 Birmingham, AL 2-73

University of Alabama at Birmingham H133N110008 Birmingham, AL 2-27

University of Arizona H133G110100 Tucson, AZ 4-17

University of Arkansas for Medical 

Sciences H133G090170 Little Rock, AR 1-25

University of California at Davis H133B090001 Sacramento, CA 2-3

University of California at San 

Francisco H133B080002 San Francisco, CA 4-3

University of Central Florida H133G120275 Orlando, FL 3-29

University of Colorado H133E090003 Denver, CO 3-5

University of Colorado Denver H133G120010 Boulder, CO 5-4

University of Colorado Denver - 

Anschutz Medical Campus H133A070006 Aurora, CO 2-20

University of Illinois at Chicago H133A110029 Chicago, IL 7-7

University of Illinois at Chicago H133B080009 Chicago, IL 4-4

University of Illinois at Chicago H133B100028 Chicago, IL 8-3

University of Illinois at UrbanaChampaign H133G110289 Champaign, IL 1-26

University of Kansas H133G090230 Olathe, KS 2-78

University of Kansas Center for 

Research H133G100082 Lawrence, KS 1-28

University of Kansas Medical 

Center H133G090136 Kansas City, KS 3-40

University of Kansas Medical 

Center H133G110131 Kansas City, KS 4-21

University of Kentucky Research 

Foundation H133G120086 Lexington, KY 2-79

University of Louisville H133G110074 Louisville, KY 3-41
Grantees

B-9

University of Louisville Research 

Foundation, Inc H133N110007 Louisville, KY 2-34

University of Maryland at Baltimore

County H133P100014 Baltimore, MD 8-24

University of Maryland at Baltimore 

County H133G090133 Baltimore, MD 5-5

University of Massachusetts Boston H133A090002 Boston, MA 1-16

University of Massachusetts Boston H133B070001 Boston, MA 1-3

University of Massachusetts Boston H133B120002 Boston, MA 1-6

University of Massachusetts Medical 

School H133B090018 Worcester, MA 1-7

University of Medicine and Dentistry 

of New Jersey H133A120152 Scotch Plains, NJ 1-18

University of Medicine and Dentistry 

of New Jersey H133G110239 Scotch Plains, NJ 2-81

University of Medicine and Dentistry 

of New Jersey/New Jersey Medical 

School (UMDNJ/NJMS) and Kessler 

Medical Rehabilitation Research and 

Education Center (KMRREC) H133P070007 West Orange, NJ 8-29

University of Medicine and Dentistry 

of New Jersey/New Jersey Medical 

School (UMDNJ/NJMS) and, Kessler 

Medical Rehabilitation Research and 

Education Center (KMRREC) H133P090009 West Orange, NJ 8-30

University of Miami H133A120099 Miami, FL 2-49

University of Miami H133G100217 Miami, FL 2-76

University of Miami H133N110003 Miami, FL 2-30

University of Michigan H133G090005 Ann Arbor, MI 3-43

University of Michigan H133G090006 Ann Arbor, MI 4-28

University of Michigan H133G110015 Ann Arbor, MI 2-80

University of Michigan H133N110002 Ann Arbor, MI 2-37

University of Michigan H133P090008 Ann Arbor, MI 8-27

University of Minnesota H133A080049 Minneapolis, MN 2-11

University of Minnesota H133B080005 Minneapolis, MN 4-9

University of Missouri at Columbia H133A110022 Columbia, MO 7-9

University of Montana H133B080023 Missoula, MT 1-9

University of Montana H133G110077 Missoula, MT 4-30

University of New Hampshire H133B100030 Durham, NH 1-10

University of New Hampshire H133G100176 Concord, NH 1-30

University of New Hampshire H133G110158 Concord, NH 1-31

University of North Carolina at 

Chapel Hill H133G100145 Chapel Hill, NC 4-32

University of Pittsburgh H133A120004 Pittsburgh, PA 2-16

University of Pittsburgh H133A120087 Pittsburgh, PA 2-17

University of Pittsburgh H133E070024 Pittsburgh, PA 3-15

University of Pittsburgh H133E090002 Pittsburgh, PA 3-17
Grantees

B-10

University of Pittsburgh H133N110011 Pittsburgh, PA 2-40

University of Pittsburgh H133P090010 Pittsburgh, PA 8-33

University of Rhode Island H133G120165 Kingston, RI 3-38

University of Richmond H133G100169 University of Richmond, VA 1-36

University of South Carolina H133G090036 Columbia, SC 4-41

University of Southern California H133E080024 Los Angeles, CA 2-10

University of Texas Medical Branch H133A120091 Galveston, TX 2-18

University of Texas Medical Branch H133G080120 Galveston, TX 3-31

University of Texas Medical Branch H133P110012 Galveston, TX 8-34

University of Washington H133A060107 Seattle, WA 2-19

University of Washington H133A070032 Seattle, WA 2-70

University of Washington H133A070047 Seattle, WA 2-25

University of Washington H133A110014 Seattle, WA 6-13

University of Washington H133A110015 Mountlake Terrace, WA 7-12

University of Washington H133A120024 Seattle, WA 2-26

University of Washington H133A120028 Seattle, WA 2-71

University of Washington H133B080024 Seattle, WA 2-9

University of Washington H133B080025 Seattle, WA 2-8

University of Washington H133G070016 Seattle, WA 2-87

University of Washington H133G090022 Seattle, WA 2-88

University of Washington H133G120055 Seattle, WA 2-89

University of Washington H133N110009 Seattle, WA 2-42

University of Washington H133P080008 Seattle, WA 8-37

University of Washington Office of 

Research H133P120002 Seattle, WA 8-38

University of Wisconsin-Madison H133E080022 Madison, WI 3-18

University of Wisconsin-Madison H133E090001 Madison, WI 3-19

University of Wisconsin-Madison H133G110003 Madison, WI 1-37

University of Wisconsin–Milwaukee H133G100211 Milwaukee, WI 3-54

University System of New Hampshire H133A100031 Durham, NH 2-12

Utah State University H133G110242 Logan, UT 3-52

Vanderbilt University Medical Center H133G120052 Nashville, TN 4-42

Vcom3D, Inc. H133S120057 Orlando, FL 3-73

Vcom3D, Inc. H133S120066 Orlando, FL 3-74

Virginia Commonwealth University H133A080027 Richmond, VA 1-23

Virginia Commonwealth University H133A080060 Richmond, VA 8-6

Virginia Commonwealth University H133A120031 Richmond, VA 2-69

Virginia Commonwealth University H133A120140 Richmond, VA 1-24

Virginia Commonwealth University H133P090013 Richmond, VA 8-36

Wayne State University H133A080044 Detroit, MI 2-53

Western Oregon University H133A060075 Eugene, OR 4-16

Western Oregon University H133G110126 Eugene, OR 4-37

Western Oregon University, 

Teaching Research Institute H133G090227 Eugene, OR 3-49

Western Oregon University, 

Teaching Research Institute H133G100153 Eugene, OR 3-50

Western Oregon University, 
Grantees

B-11

Teaching Research Institute H133G120149 Eugene, OR 4-38

WGBH Educational Foundation H133G110095 Boston, MA 3-42

World Institute on Disability H133G120093 Berkeley, CA 2-74

Wright State University H133G110285 Dayton, OH 4-35

Xiaoyan Li H133F110033 Chicago, IL 8-10
Projects by State

Projects by State

C-3

Alabama

Cognitive Behavioral Therapy (CBT) for 

Caregivers of Operation Iraqi Freedom/

Operation Enduring Freedom (OIF/OEF) 

Service Members with Traumatic Brain Injury 

(TBI) ................................................................ 2-72

Falls-Based Training to Improve Balance and 

Mobility Post-Stroke........................................ 2-73

Interactive Exercise Technologies and 

Exercise Physiology for People with 

Disabilities......................................................... 3-3

National Spinal Cord Injury Statistical Center .. 6-5

National Spinal Cord Injury Statistical Center 

(NSCISC)........................................................... 6-4

UAB Spinal Cord Injury Model System.......... 2-27

UAB Traumatic Brain Injury Model System... 2-44

University of Alabama at Birmingham (UAB) 

Traumatic Brain Injury Model System (UAB 

TBIMS)............................................................ 2-43

Arizona

Deaf Interpreter Certification Project: 

Certifying Intermediary Interpreters Who Are 

Deaf to Ensure Effective Communication for 

the Deaf, Hard of Hearing, and Deaf-Blind..... 4-17

Arkansas

Beyond Hearing Aids: Training Resources to 

Improve the Capacity of VR Professionals 

Serving Consumers who are Hard of Hearing 

and Late Deafened ........................................... 1-25

California

A Music-Based Rehabilitation Device for 

Training and Assessing Hand Function ........... 3-56

Accessible People Finder Application for 

Individuals with Visual Impairments............... 3-58

Accessible Web Automation for People With 

Vision Impairments.......................................... 3-69

Advanced Rehabilitation Research Training in 

Neuromuscular and Neurodevelopmental 

Disorders.......................................................... 8-18

Development of a Robust Sensory Feedback 

System for Persons with Lower-Limb Sensory 

Deficits............................................................. 3-71

Electronic Tactile Displays for Braille Text 

and Graphics .................................................... 3-23

Families with Disabilities Through the Life 

Cycle: Disability Culture Perspectives ............ 4-14

Global Access Information Navigator ............. 3-24

Modular Orthoses Prescription System 

(MOPS)............................................................ 3-22

National Center for Parents with Disabilities 

and Their Families ........................................... 4-13

NEW DOOR: Nutrition, Exercise, Weight 

Management & Disability Obesity Options 

and Resources .................................................. 2-74

Northern California Traumatic Brain Injury 

Model System of Care ..................................... 2-45

Pacific ADA National Network Regional 

Center - Region IX.........................................41101

Personal Assistance Services (PAS) in the 21st 

Century............................................................... 4-3

Rehabilitation Engineering Research Center 

for Successful Aging with Disability: 

Optimizing Participation Through Technology 

(OPTT-RERC) ................................................. 2-10

Rehabilitation Engineering Research Center: 

Develop and Evaluate Technology for Low 

Vision, Blindness, and Multi-Sensory Loss....... 3-4

Rehabilitation Research and Training Center 

in Neuromuscular Diseases (RRTC-NMD) ....... 2-3

Resonating Arm Exerciser: Affordable Active 

Assistance for Arm Rehabilitation................... 3-57

Southern California Spinal Cord Injury Model 

System at Rancho Los Amigos National 

Rehabilitation Center ....................................... 2-28

Technology Access in Resource-Limited 

Environments................................................... 3-21

Ubiquitous Web Access for People with Visual 

Impairments ..................................................... 3-70

Colorado

Developing a Relevant Instrument to Assess 

Caregiver Distress and Benefit in Spinal Cord 

Injury................................................................ 2-75

Development and Evaluation of Accessible 

Voter Education Software for Students and 

Adults with Intellectual Disabilities................. 3-59

Executive Function and Participation in Daily 

Life in Children with Down Syndrome ........... 4-18
Projects by State

C-4

Impact of the Great Recession and Its 

Aftermath on Public Spending and Services 

for Persons with Disabilities: A 50 State Study, 

FY 2009-13 ........................................................ 5-4

National Data and Statistical Center for the 

TBI Model Systems......................................... 2-46

Rehabilitation Engineering Research Center 

for Cognitive Rehabilitation .............................. 3-5

Rocky Mountain ADA National Network 

Regional Center - Region VIII......................... 7-10

The Rocky Mountain Regional Brain Injury 

Model System (RMRBIMS)............................ 2-48

The Rocky Mountain Regional Spinal Injury 

System.............................................................. 2-29

UCD Burn Model System Data Coordination 

Center (BMS/DCC) ......................................... 2-20

Visual Impact Phase II: Using Cloud-Based 

Technology to Support Activities of Daily 

Living and Other Learning Needs to Facilitate 

Independence for Individuals with Intellectual 

Disabilities....................................................... 3-72

District of Columbia

Advanced Rehabilitation Research Training in 

Neurorehabilitation .......................................... 8-19

An Automatic Fitting Algorithm for Cochlear 

Implant ............................................................. 3-25

Model Systems Knowledge Translation Center 

(MSKTC)........................................................... 6-6

Over-Ground Gait Training with a Novel 

Dynamic Body-Weight Support System.......... 3-27

Prosody and Voice Characteristics of Children 

with Cochlear Implants.................................... 3-28

Rehabilitation Engineering Research Center 

on Hearing Enhancement................................... 3-6

Rehabilitation Research and Training Center 

on Secondary Conditions in Spinal Cord 

Injury.................................................................. 2-4

The Captioned Braille Radio Initiative: 

Providing Emergency Information for 

Individuals who are Deaf-Blind....................... 3-26

Florida

Development of an Intelligent Assistive 

Robotic System for Individuals with Multiple 

Sclerosis........................................................... 3-29

Fluentbuddy Device to Enhance the Sensory 

and Motor Function of Individuals with 

Speech Communication Disabilities................ 3-61

Mobile Communication App for Deaf and 

Hard of Hearing ............................................... 3-73

Mobile Signing Math Dictionary with Mouth 

Morphemes ...................................................... 3-74

Sleep-Disordered Breathing in Persons with 

Chronic Tetraplegia: Characterization and 

Intervention...................................................... 2-76

South Florida Regional Spinal Cord Injury 

Model System .................................................. 2-30

South Florida Traumatic Brain Injury Model 

System (SF-TBIMS)........................................ 2-49

Tactile Awareness Prompting (TAP) System ... 3-60

Georgia

DRRP on Universal Design Practices to 

Enhance Work Outcomes................................. 1-14

Language and Literacy Outcomes of 

Preschool Children with Traumatic Brain 

Injury................................................................ 4-19

Rehabilitation Engineering Research Center 

for Wheeled Mobility in Everyday Life............. 3-8

Rehabilitation Engineering Research Center 

for Wireless Technologies.................................. 3-9

Rehabilitation Engineering Research Center 

on Workplace Accommodations ........................ 3-7

Southeast ADA National Network Regional 

Center - Region IV............................................. 7-6

Southeastern Regional Spinal Cord Injury 

Model System at Shepherd Center................... 2-31

Virtual Home Modifications Education 

Assistant (VHMEA) for Educators, Students, 

and Consumers................................................. 3-30

Illinois

A Supported Employment Program for People 

with HIV/AIDS................................................ 1-27

Advanced Rehabilitation Research Training 

Project in Rehabilitation Services Research .... 8-20

Advanced Rehabilitation Research Training: 

Interventions for Neurologic Communication 

Disorders.......................................................... 8-23

Advanced Training in Translational and 

Transformational Research to Improve 

Outcomes for People with Disabilities ............ 8-21
Projects by State

C-5

Building the Foundation of Clinical Practice 

of EMG Pattern Recognition for Prosthetic 

Arm Control..................................................... 3-38

Cross-Sector Patterns of Treatment for 

Children with Autism....................................... 8-11

Design and Development of a Novel BodyPowered Prehensor and Hand .......................... 3-36

Development of a Low-Cost Dilatancy-Based 

System for Orthotic Fabrication....................... 3-34

Development of a Web-Based Nemeth Code 

(Braille Mathematics) Tutorial for Use by 

Individuals Who Are Blind .............................. 3-39

Development of an Advanced Prosthetic 

Microcontroller System ................................... 3-32

Development of Quality Measures for PostStroke Rehabilitation ....................................... 6-12

EEG Measures of Cognitive Workload in 

Prosthetic Use .................................................. 8-12

Enhancing Written Communication in 

Persons with Aphasia: A Clinical Trial ............ 4-20

Evaluating the Efficacy of an Occupational 

Intervention Targeting Young Adult Brain 

Tumor Survivors.............................................. 1-26

Great Lakes ADA National Network Regional 

Center - Region V .............................................. 7-7

Individual, Household, and Community-Level 

Correlates of Social Participation for LowIncome Children with Disabilities: An 

Ecological Analysis Using Making 

Connections Survey Data................................. 8-13

Machines Assisting Recovery from Stroke 

and Spinal Cord Injury for Reintegration into 

Society (MARS3)............................................. 3-12

Midwest Regional Spinal Cord Injury Care 

System (MRSCIS) ........................................... 2-32

Midwest Regional Spinal Cord Injury Care 

System (MRSCIS) ........................................... 2-33

Midwest Regional Traumatic Brain Injury 

Model System: Innovative Approaches to 

Improve Cognition, Function, and Community 

Living............................................................... 2-50

Motor Unit Control Property Changes PostStroke: A High-Yield Surface EMG 

Decomposition Analysis .................................. 8-10

Noninvasive Examination of ALS Using 

Surface EMG ................................................... 2-77

Rehabilitation Engineering Research Center 

for Prosthetics and Orthotics............................ 3-11

Rehabilitation Research and Training Center 

on Aging with Developmental Disabilities: 

Lifespan Health and Function............................ 4-4

Rehabilitation Research and Training Center 

on Enhancing the Functional and Employment 

Outcomes of Individuals Who Experience a 

Stroke ................................................................. 2-5

Rehabilitation Research and Training Center 

on Improving Measurement of Medical 

Rehabilitation Outcomes.................................... 6-3

Rehabilitation Robotics and Telemanipulation 

Machines Assisting Recovery from Stroke 

Rehabilitation Engineering Research Center 

(MARS-RERC)................................................ 3-10

Rehabilitation Sciences for Engineers and 

Basic Scientists: An Advanced Training 

Program............................................................ 8-22

RRTC on Psychiatric Disability and Cooccurring Medical Conditions............................ 8-3

The Development of a Commercial 

Rehabilitation Device to Regain Arm 

Function Following Stroke .............................. 3-33

The Development of a Real Time Platform for 

Intuitive Control of Grasp and Release During 

Functional Arm Activities Following Stroke ... 3-37

The Effect of Resistance to ParticipantSupported Reaching on Workspace of the 

Hand in Severe Chronic Stroke........................ 3-35

UIC Obesity Research Project on Prevalence, 

Adaptations, and Knowledge Translation in 

Youth and Young Adults with Disabilities 

from Diverse Race/Ethnic Backgrounds.......... 4-15

Indiana

Brain Research in Aggression and Irritability 

Network (BRAIN): Building Evidence-Based 

Approaches to Managing Traumatic Brain 

Injury................................................................ 2-51

Kansas

Accommodations and ADA for PostSecondary Students with Disabilities............... 4-22

Examination of the Use of a Spanish Version 

of the Online and Applied System for 

Intervention Skills (OASIS) Training 

Program with Parents of Children with an 

Autism Spectrum Disorder .............................. 4-21
Projects by State

C-6

Experimental Evaluation of the Online and 

Applied System for Intervention Skills 

(OASIS) Training Program Using Video-Conferencing for Parents of Children with an 

Autism Spectrum Disorder .............................. 3-40

Rehabilitation Research and Training Center 

on Community Living........................................ 4-6

Rehabilitation Research and Training Center 

on Measurement and Interdependence in 

Community Living (RRTC/MICL).................... 4-5

The Nexus of Employment, Health and 

Disability: A Study of Health Status and 

Quality of Life Among Medicaid Buy-In 

Participants....................................................... 1-28

Weight Loss by Individuals with Physical 

Disabilities....................................................... 2-78

Kentucky

Combining Brain Stimulation and Peripheral 

Nerve Stimulation to Improve Upper 

Extremity Function After Severe Stroke.......... 2-79

Frazier Rehabilitation and Neuroscience 

Spinal Cord Injury Model System 

(FRNSCIMS)................................................... 2-34

In-depth Assessment of Wheelchair Ramp 

Activities and Incidents on Public Transit 

Buses................................................................ 3-41

TerpTube: An Accessible Online Portfolio for 

Deaf Mentors and Sign Language Interpreters 4-23

Maryland

AbleData .......................................................... 6-16

Center for Transition to Employment for 

Youth with Disabilities..................................... 1-15

Health Care Disparities in Access and 

Utilization among Individuals with 

Disabilities......................................................... 5-5

Impacts and State Utilization of HCBS 

Waiver Services for Families and Children 

with Autism........................................................ 5-6

Johns Hopkins University Burn Injury 

Rehabilitation Model System (JHU-BIMS)..... 2-21

Mid-Atlantic ADA National Network 

Regional Center - Region III.............................. 7-5

National Rehabilitation Information Center 

(NARIC) .......................................................... 6-15

Omega Fatty Acids in Neurological 

Recovery .......................................................... 8-14

University of Maryland Advanced 

Neuromotor Rehabilitation Research Training 

(UMANRRT)................................................... 8-24

Massachusetts

Access to Electronic and Personal Health 

Records ............................................................ 3-42

Advanced Research Training Program in 

Psychiatric Rehabilitation ................................ 8-25

Boston-Harvard Burn Injury Model System.... 2-22

Cardiovascular Fitness, Cognition, Mood, and 

Function in Community-dwelling People with 

Traumatic Brain Injury (TBI) .......................... 8-15

Cooling System for Multiple Sclerosis 

Patients............................................................. 3-75

Do Animations Facilitate Symbol 

Understanding in Children with Autism? ........ 4-25

ENhancing ACTivity and Participation for 

Persons with Arthritis (ENACT)........................ 4-7

Evaluation of “Project TEAM (Teens making 

Environmental and Activity Modifications)”: 

Effectiveness, Social Validity, and 

Feasibility......................................................... 4-26

Improved Employment Outcomes for 

Individuals with Psychiatric Disabilities ........... 1-5

Learning and Working During the Transition 

to Adulthood....................................................... 1-7

Life Skills: Transitioning from Homelessness 

and Isolation to Housing Stability and 

Community Integration.................................... 4-24

NERSCIC: Improving the Lives of People 

with SCI Across the Lifespan Through 

Innovative Science and Technology ................ 2-36

New England ADA National Network 

Regional Center - Region I ................................ 7-3

Post Doctoral Training in Rehabilitation 

Outcomes Measurement Research................... 8-26

Rehabilitation Research and Training Center 

on Vocational Rehabilitation Research .............. 1-3

Research and Technical Assistance Center on 

Vocational Rehabilitation Program 

Management..................................................... 1-16

Socket Pressure Monitoring System................ 3-62

Spaulding-Harvard Spinal Cord Injury Model 

System.............................................................. 2-35
Projects by State

C-7

Spaulding-Harvard Traumatic Brain Injury 

Model System .................................................. 2-52

The Intelligent Brace: A Compliance 

Monitoring System for Scoliosis ..................... 3-63

Toolkit of Recovery Promoting Competencies 

for Mental Health Rehabilitation Providers..... 4-27

Vocational Rehabilitation and Developing 

Strategies to Meet Employer Needs in 

Changing Economic Environments ................... 1-6

Michigan

Addressing Self-Management Skills Through 

Electronic Gaming: Meeting the Needs of 

Underserved Individuals with SCI................... 3-44

Auditory and Visual Working Memory in 

Children with Cerebral Palsy........................... 2-80

Michigan Traumatic Brain Injury Model 

System (SEMTBIS)......................................... 2-53

Preparations for In-Home Testing of BrainComputer Interfaces Operating Assistive 

Technology....................................................... 3-43

The Effects of a Bicycle Training Intervention 

on Health, Physical Activity, Sleep, and 

Community Participation in Youth with Down 

Syndrome and Autism Spectrum Disorders..... 4-28

The UMHS/AACIL Rehabilitation Research 

Training Program............................................. 8-27

University of Michigan Spinal Cord Injury 

Model System .................................................. 2-37

Virtual Environment for Social Information 

Processing (VESIP) Phase II ........................... 3-76

Minnesota

Blind Orientation and Mobility Training 

Using Simulated Environment Audio .............. 3-66

Brain Computer Interface to Enable Improved 

Communication Access.................................... 3-64

Enhancing Conversation Intelligibility for 

Hearing Aid Users in Noisy Environments...... 3-65

Health Care Coordination for Individuals with 

Physical Disabilities: Critical Elements and 

Consumer Outcomes........................................ 2-11

Improved Hearing Aid Connection to Public 

Induction Loops............................................... 3-77

Indoor Route Following Tool for the Blind ..... 3-78

Mayo Clinic Traumatic Brain Injury Model 

System.............................................................. 2-54

Mayo Clinic Traumatic Brain Injury Model 

System.............................................................. 2-55

Partnerships in Wellness: Training and 

Technical Assistance Model............................. 4-29

Rehabilitation Research and Training Center 

for Community Living and Employment for 

Individuals with Intellectual and 

Developmental Disabilities................................ 4-9

Mississippi

RRTC on Employment Outcomes for 

Individuals Who Are Blind or Visually 

Impaired ............................................................. 1-8

Missouri

Determining the Efficacy of the SelfDetermined Career Development Model of 

Instruction to Improve Employment 

Outcomes for Adults with Developmental 

Disabilities....................................................... 1-29

Great Plains ADA National Network Regional 

Center - Region VII............................................ 7-9

Montana

Participation Interference Patterns: 

Investigating the Relative Impact of Pain and 

Environmental Barriers on Participation ......... 4-30

Rehabilitation Research and Training Center 

on Disability in Rural Communities.................. 1-9

New Hampshire

A Prospective National Study of Sustaining 

IPS Through Vocational Rehabilitation and 

Mental Health Collaboration............................ 1-33

A Randomized Controlled Trial of Two 

Vocational Models for Individuals with 

Psychiatric Disabilities and Criminal Justice Involvement......................................................... 1-32

Building Knowledge and Capacity in the 

Rehabilitation and Recovery of African 

Americans Suffering from Severe Mental 

Illness: The Dartmouth-Howard 

Collaboration...................................................... 8-4

Development Center to Enhance EvidenceBased Supportive Employment with a 

Technology-Based Management System......... 1-17
Projects by State

C-8

Development of an Employment Consultation 

Staff Training Model for Workplace 

Inclusion........................................................... 1-30

Health and Health Care Disparities Among 

Individuals with Disabilities............................ 2-12

RRTC on Employment Policy and 

Measurement.................................................... 1-10

Sustainable Implementation of FamilyCentered Transition Planning for Young 

Adults with Autism Spectrum Disorders......... 1-31

New Jersey

Advanced Rehabilitation Research Training 

Center on Neurocognitive Rehabilitation ........ 8-30

Advanced Rehabilitation Research Training 

Center on Neuro-musculoskeletal 

Rehabilitation................................................... 8-29

Developing Executive Functioning through 

Cognitive Remediation for College Students 

with Psychiatric Disabilities ............................ 2-81

Impact of Prism Adaptation Therapy for 

Spatial Neglect on Home and Community Outcomes ............................................................... 3-46

Improved Weight Bearing Evaluation of Knee 

Osteoarthritis.................................................... 3-45

Improving New Learning and Memory in TBI: 

Applying fMRI to Measure Outcome .............. 2-82

JFK-Johnson Rehabilitation Institute TBI 

Model System .................................................. 2-56

Manual and Training Program to Promote 

Career Development Among Transition Age 

Youth and Young Adults with Psychiatric 

Conditions........................................................ 1-18

Northern New Jersey Spinal Cord Injury 

System.............................................................. 2-38

Northern New Jersey Traumatic Brain Injury 

System (NNJTBIS).......................................... 2-57

Northern New Jersey Traumatic Brain Injury 

System (NNJTBIS).......................................... 2-58

Rehabilitation Research and Training Center 

on Disability Statistics and Demographics........ 5-3

Rehabilitation Research and Training Center: 

Individual-Level Characteristics Related to 

Employment Among Individuals with 

Disabilities....................................................... 1-11

New York

Center for International Rehabilitation 

Research Information & Exchange 

(CIRRIE-3) ........................................................ 6-9

Center on Effective Delivery of Rehabilitation 

Technology by Vocational Rehabilitation 

Agencies........................................................... 1-20

Center on Knowledge Translation for 

Technology Transfer .......................................... 6-7

Classification and Measurement of Medical 

Rehabilitation Interventions............................. 2-13

Cornell RRTC on Employer Practices Related 

to Employment Outcomes Among Individuals 

with Disabilities............................................... 1-12

Demand-Side Employment Placement 

Models.............................................................. 1-19

Effects of Resistive Respiratory Muscle 

Training on Respiratory Function, Functional 

Performance, Fatigue, and Quality of Life in 

Individuals with Multiple Sclerosis................. 2-83

Mt. Sinai Advanced Rehabilitation Research 

Training............................................................ 8-31

New York Traumatic Brain Injury Model 

System (NY-TBI-MS)...................................... 2-59

Northeast ADA National Network Regional 

Center - Region II .............................................. 7-4

Organizational Practices to Increase 

Employment Opportunities for People with 

Disabilities: The Power of Social Networks.... 1-34

Peer-to-Peer Project: A Peer Support Network 

for Students with Significant Intellectual and 

Developmental Disabilities in Higher 

Education ......................................................... 4-31

RERC on Universal Design in the Built 

Environment..................................................... 3-13

Rush Advanced Rehabilitation Research 

Training Postdoctoral Fellowship .................... 8-32

Rusk Rehabilitation Traumatic Brain Injury 

Model System of Care at NYU........................ 2-60

Studying Treatments and Effectiveness of 

Prosthetic Systems (STEPS): Utilizing a 

Regional Collaborative Longitudinal 

Outcomes Database (CLOUD) ........................ 3-47
Projects by State

C-9

North Carolina

Carolinas Traumatic Brain Injury 

Rehabilitation and Research System 

(CTBIRRS)...................................................... 2-61

Implementing Psychiatric Advance Directives 

with Peer Specialist Facilitators....................... 4-33

Improving Money Management Skills in 

Veterans with Psychiatric Disabilities.............. 4-32

Pocket Potty Program - Toilet Training for 

Children with Developmental Disabilities....... 3-67

Rehabilitation Engineering Research Center 

for Communication Enhancement (AACRERC).............................................................. 3-14

TBI Model System Collaborative Study of 

Amantadine for Post TBI Irritability and 

Aggression ....................................................... 2-14

Ohio

Deaf Off Drugs and Alcohol: Evaluating a 

Technology-Assisted E-Therapy Program for 

SUD Treatment ................................................ 4-35

Developing College Campuses as Transition 

Settings for Students with Severe and 

Multiple Disabilities Aged 18-21..................... 4-36

Individualized Planning for the First Year 

Following Acute Rehabilitation Project........... 2-15

Ohio Regional TBI Model System .................. 2-62

Ohio Regional Traumatic Brain Injury Model 

System.............................................................. 2-63

Rehabilitation Research and Training Center 

on Interventions for Children and Youth with 

TBI..................................................................... 2-6

Web Therapy to Improve Outcomes After 

Traumatic Brain Injury in Young Children ...... 4-34

Oklahoma

Haptic Feedback Improvements for 

Prostheses......................................................... 3-79

Oregon

Defining Success: Web-Based Transition 

Training for Students with Traumatic Brain 

Injury................................................................ 4-37

Development of a Web-based Tool for 

Families Impacted by the Cognitive, 

Behavioral, and Social Challenges of 

Traumatic Brain Injury..................................... 3-50

GPS-TBI: Generalizing Problem Solving 

Strategies to Everyday Environments 

Following TBI.................................................. 4-38

LifeWorks: Development of an a Web-Based 

Life Management Application for Individuals 

with Cognitive Disabilities and Caregivers ..... 4-43

Parent-Infant Interaction Project (PIIP)........... 4-38

Promoting Adoption and Implementation of 

the Healing Pathways Program to Reduce 

Depressive Symptoms in Women with 

Physical Disabilities......................................... 2-84

Randomized Field-Test of the Internet-based 

Safer and Stronger Program for Women with 

Disabilities....................................................... 4-40

Rehabilitation Research and Training Center 

for Pathways to Positive Futures: Supporting 

Successful Transition for Youth and Young 

Adults with Serious Mental Health 

Conditions........................................................ 4-10

Researching Accessibility Gaps in Transit 

Hub Communication Systems and 

Standards.......................................................... 3-48

School Transition & re-Entry Program 

(STEP): Systematic Hospital-to-School 

Transition for Students with Traumatic Brain 

Injury................................................................ 4-16

The TATE Project: Training Assistive 

Technology in the Environment....................... 3-49

Pennsylvania

Career Advancement for Engineers in the 

Science of Rehabilitation (CAESOR).............. 8-33

Collaboration on Mobility Training 

(COMIT).......................................................... 2-16

Evaluation of a Training Program to Enhance 

Clinical Supervision of State Vocational 

Rehabilitation Supervisors............................... 1-35

Feasibility Evaluation of a Forward Facing 

Wheelchair Passenger Safety Station for Use 

in Large Accessible Transit Vehicles ............... 3-68

Regional Spinal Cord Injury Center of the 

Delaware Valley ............................................... 2-39

Rehabilitation Engineering Research Center 

on Accessible Public Transportation................ 3-16

Rehabilitation Engineering Research Center 

on Spinal Cord Injury....................................... 3-15
Projects by State

C-10

Rehabilitation Engineering Research Center 

on Telerehabilitation ........................................ 3-17

Rehabilitation Research and Training Center 

on Participation and Community Living of 

Individuals with Psychiatric Disabilities ......... 4-11

Rehabilomics: Revolutionizing 21st Century 

TBI Care and Research .................................... 2-17

The Moss Traumatic Brain Injury Model 

System.............................................................. 2-64

The Moss Traumatic Brain Injury Model 

System.............................................................. 2-65

University of Pittsburgh Model Center on 

Spinal Cord Injury............................................ 2-40

South Carolina

Ambulation and Secondary Complications: 

Participants with Chronic Spinal Cord Injury.. 2-85

Center on Health Outcomes Research and 

Capacity Building for Underserved 

Populations with SCI and TBI........................... 8-5

Investigating Environmental Factors Affecting 

Community Integration.................................... 4-41

Participation, Subjective Well Being, Health, 

and Spinal Cord Injury:A 40-Year 

Longitudinal Study........................................... 2-86

Rehabilitation Research and Training Center 

on Secondary Conditions in Individuals with 

SCI ..................................................................... 2-7

Successful Employment and Quality Work 

Life After Severe Disability Due to Spinal 

Cord Injury....................................................... 1-21

Tennessee

Improving Trauma Outcomes: A Goal 

Management Approach .................................... 4-42

Texas

ADA Participation Action Research 

Consortium....................................................... 7-13

Advanced Rehabilitation Research Training ... 8-35

Developing Strategies to Foster Community 

Integration and Participation (CIP) for 

Individuals with Traumatic Brain Injury.......... 4-12

Development of a Virtual Reality Weight 

Management Intervention for Women with 

Mobility Impairments...................................... 3-51

Improving Functional Participation in 

Stroke ............................................................... 8-16

Interdisciplinary Rehabilitation Research 

Training Program............................................. 8-34

Modulation of Catabolism Mediated by 

Catecholamine in Severely Burned Children: 

Analysis of Outcomes at Hospital Discharge, 

6 Months, 1, 2, 5, 10, 15 and 20 Years PostInjury................................................................ 2-18

North Texas Burn Rehabilitation Model 

System (NTBRMS).......................................... 2-23

North Texas Burn Rehabilitation Model 

System (NTBRMS).......................................... 2-24

North Texas Traumatic Brain Injury Model 

System.............................................................. 2-66

Parenting in Adults with Traumatic Brain 

Injury................................................................ 8-17

SEDL Center on Knowledge Translation for 

Employment Research ..................................... 6-10

SEDL’s Vocational Rehabilitation Service 

Models for Individuals with Autism Spectrum 

Disorders.......................................................... 1-22

SEDL’s Center on Knowledge Translation for 

Disability and Rehabilitation Research............ 6-11

Southwest ADA National Network Regional 

Center - Region VI............................................. 7-8

Texas Model Spinal Cord Injury System......... 2-41

Texas TBI Model System of TIRR .................. 2-68

The Texas Traumatic Brain Injury Model 

System of TIRR ............................................... 2-67

Video Gaming Technology to Promote Health 

and Fitness Among Adolescents with 

Disabilities....................................................... 3-31

Utah

Experimental Research on Pedestrian and 

Evacuation Behaviors of Individuals with 

Disabilities; Theory Development Necessary 

to Characterize Individual-Based Models........ 3-52

New Electro-Hydraulic Foot Prosthesis........... 3-80
Projects by State

C-11

Virginia

Advanced Research Training Program in 

Neurobehavioral Recovery and Intervention... 8-36

Comparison of Transition Programs for 

Students with Intellectual Disability: Are 

Experiences, Supports, and Outcomes 

Different for those in Postsecondary 

Education Programs? ......................................... 8-7

Empowerment: Building Research 

Infrastructure Capacity....................................... 8-6

Enhancing Outcome-Based Performance 

Measures for the Public Vocational 

Rehabilitation Program: Developing Return 

on Investment Models...................................... 1-36

Facilitating Employment for Youth with 

Autism: A Replication Study of an Internship 

Model to Identify Evidence Based Practices... 1-24

Virginia Commonwealth Traumatic Brain 

Injury Model System........................................ 2-69

Vocational Rehabilitation Service Models for 

Individuals with Autism Spectrum Disorders 

(VCU ASC Career Links)................................ 1-23

Washington

ADA Network Knowledge Translation 

Center............................................................... 6-13

Advanced Training on Outcomes in 

Rehabilitation Research (UW-ATORR)........... 8-38

Amitriptyline to Prevent Headache after 

Traumatic Brain Injury..................................... 2-89

Controlled Trial of Venlafaxine XR for 

Depression After SCI: A Multisite Study........ 2-19

Furthering Collaboration Among Disability 

and Aging Research Networks........................... 8-8

Multiple Sclerosis Rehabilitation Research 

and Training Center............................................ 2-8

Natural History of Headache Following Mild 

Traumatic Brain Injury..................................... 2-88

Northwest ADA National Network Regional 

Center - Region X............................................ 7-12

Northwest Regional Burn Model System 

Center............................................................... 2-26

Northwest Regional Spinal Cord Injury 

System.............................................................. 2-42

Rehabilitation Research and Training Center 

on Aging with a Physical Disability: Reducing 

Secondary Conditions and Enhancing Health 

and Participation, Including Employment ......... 2-9

Telephone and In-Person Cognitive Behavioral 

Therapy for Depression After Traumatic Brain 

Injury................................................................ 2-87

University of Washington Advanced 

Rehabilitation Research Training..................... 8-37

University of Washington Burn Model 

System.............................................................. 2-25

University of Washington Traumatic Brain 

Injury Model System........................................ 2-70

University of Washington Traumatic Brain 

Injury Model System (UWTBIMS)................. 2-71

West Virginia

Explorative Study of Service Animal 

Utilization in the Workplace .............................. 8-9

Wisconsin

Access Mainstreet: Universal Design 

Information Tool (UD-IT)................................ 3-54

Advanced Rehabilitation Research Training 

(ARRT) in Pediatric to Adult Transition.......... 8-40

Advanced Rehabilitation Research Training in 

Pediatric Mobility ............................................ 8-39

Agricultural Assistive Technology Training .... 3-53

Creating Evidence-Based Vocational 

Rehabilitation Service Delivery Practices ....... 1-13

Development of a Passive Prosthetic Ankle 

with Energy Return that Matches that of a 

Natural Ankle ................................................... 3-55

Improving Work Ability Among Breast Cancer 

Survivors.......................................................... 1-37

Rehabilitation Engineering Research Center 

for Universal Interface and Information 

Technology Access........................................... 3-18

Rehabilitation Engineering Research Center 

on Technologies for Children with Orthopedic 

Disabilities....................................................... 3-20

Rehabilitation Engineering Research Center 

on Telecommunications Access....................... 3-19
Principal Investigators

Principal Investigators

D-3

Abery, Brian, PhD

University of Minnesota

612/625-5592 ................................................... 2-11

Acosta, Ana Maria, PhD

Northwestern University

312/908-8160 ..........................................3-33; 3-35

Aisen, Mindy L., MD

Rancho Los Amigos National 

Rehabilitation Center

562/401-7541 ................................................... 2-28

Allen, David, PhD

Portland State University

503/725-4687 ................................................... 4-38

Anderson, Shane

Koronis Biomedical Technologies 

Corporation

763/515-5355 ................................................... 3-78

Apple, David F., Jr., MD

Shepherd Center, Inc.

404/350-7582 ................................................... 2-31

Archer, Kristin R., PhD, DPT

Vanderbilt University Medical Center

615/322-2732 ................................................... 4-42

Ashman, Teresa, PhD

New York University School of Medicine

212/263-6164 ..........................................2-60; 8-32

Bakke, Matthew H., PhD

Gallaudet University

202/651-5335 ............................................3-6; 3-25

Barrance, Peter, PhD

Kessler Foundation

973/324-3550 ..........................................3-45; 8-29

Barrett, Anna M., MD

Kessler Foundation, Inc.

973/324-3563 ................................................... 3-46

Behal, Aman, PhD

University of Central Florida

407/882-2820 ................................................... 3-29

Belknap, Katherine

ICF International

301/608-8998, ext. 105 .................................... 6-16

Bell, Kathleen R., MD

University of Washington

206/685-0935 .......................2-70; 2-71; 2-88; 2-89

Beukelman, David, PhD

Duke University

919/684-6271 ................................................... 3-14

Bilaver, Lucy A.

312/503-3265 ................................................... 8-11

Blanck, Peter D., PhD, JD

Syracuse University

315/443-9703 .................................. 1-19; 1-20; 7-6

Bodine, Cathy PhD

University of Colorado

303/315-1281 ..................................................... 3-5

Bogner, Jennifer, PhD

Ohio Valley Center for Brain Injury 

Prevention and Rehabilitation

614/293-3830 ..........................................2-62; 2-63

Bombardier, Charles H., PhD

University of Washington

206/731-3665 ..........................................2-19; 2-42

Bond, Gary R., PhD

Trustees of Dartmouth College

603/448-0263 ..........................................1-32; 1-33

Boninger, Michael L., MD

University of Pittsburgh

412/648-6979 ..........................................2-16; 2-40

Boone, Steven E., PhD

University of Arkansas for 

Medical Sciences

501/686-7348 ................................................... 1-25
Principal Investigators

D-4

Borodin, Yevgen

Charmtech Labs, LLC

516/313-7356 ..........................................3-69; 3-70

Brabyn, John A., PhD

The Smith-Kettlewell Eye Research 

Institute

415/345-2110 ..................................................... 3-4

Braddock, David L., PhD

University of Colorado Denver

303/492-0639 ..................................................... 5-4

Bregman, Barbara S., PhD

Georgetown University

202/687-1452 ................................................... 8-19

Brienza, David M., PhD

University of Pittsburgh

412/624-6383 ..........................................3-15; 3-17

Brooks, Larry, PhD

University of Miami

305/243-9516 ................................................... 2-30

Brotherton, Sandra, PhD

Medical University of South Carolina

843/792-1337 ................................................... 2-85

Brown, Allen W., MD

Mayo Clinic

507/255-3116 ..........................................2-54; 2-55

Brown, David A., PhD

University of Alabama at Birmingham

205/975-2788 ................................................... 2-73

Bruyère, Susanne M., PhD

Cornell University

607/255-9536 (V)|607/255-2891 (TTY).......... 1-12

Burns, Stephen P., MD

University of Washington

206/731-3665 ................................................... 2-42

Bushnik, Tamara, PhD

New York University School of Medicine

212/263-6547 ................................................... 2-60

Buzhardt, Jay, PhD

University of Kansas Medical Center

913/945-6604 ................................................... 3-40

Capella McDonnall, Michele, PhD

Mississippi State University

662/325-2001 ..................................................... 1-8

Cardenas, Diana D., MD

University of Miami

305/243-9516 ................................................... 2-30

Cardoso, Elizabeth, PhD

Kessler Foundation

973/324-8387 ..................................................... 5-3

Cavenaugh, Brenda, PhD

Mississippi State University

662/325-2001 ..................................................... 1-8

Chan, Fong, PhD

The Board of Regents of the University 

of Wisconsin System

608/262-2137 ................................................... 1-13

Charlifue, Susan, PhD

Craig Hospital

303/789-8306 ..........................................2-29; 2-75

Chaubey, Pravin

OrthoCare Innovations, LLC

405/271-2466 ................................................... 3-79

Chen, David, MD

Rehabilitation Institute of Chicago (RIC)

312/238-0764 ..........................................2-32; 2-33

Chen, Yuying, MD, PhD

University of Alabama at Birmingham

205/934-3320 ..............................................6-4; 6-5

Cherney, Leora R., PhD

Northwestern University

312/238-1117 ..........................................4-20; 8-23
Principal Investigators

D-5

Chiaravalloti, Nancy D., PhD

Kessler Foundation

973/324-8440 (Chiaravalloti)....... 2-57; 2-58; 2-82; 

8-30

Chiodo, Anthony, MD

University of Michigan

734/763-0971 ................................................... 2-37

Christensen, Keith, PhD

Utah State University

435/797-0507 ................................................... 3-52

Cicerone, Keith D., PhD

JFK Johnson Rehabilitation 

Institute

732/906-2640 ................................................... 2-56

Condon, John

Innovative Design Labs, Inc.

612/251-6560 ................................................... 3-66

Cook, Judith A., PhD

University of Illinois at Chicago

312/355-3921 ..................................................... 8-3

Copeland, Jana, PhD

Meeting the Challenge, Inc.

800/949-4232 (V/TTY, in CO, MT, 

ND, SD, UT, and WY), 719/444-

0268 (V/TTY).................................................. 7-10

Corrigan, John D., PhD

Ohio Valley Center for Brain Injury 

Prevention and Rehabilitation

614/293-3830 ................................ 2-15; 2-62; 2-63

Crossman, Jacob

Soar Technology, Inc.

734/887-7613 ................................................... 3-76

Crudden, Adele

Mississippi State University

662/325-2001 ..................................................... 1-8

Culjat, Martin, PhD

Farus, LLC

310/869-5504 ................................................... 3-71

Dagmar Amtmann, PhD

University of Washington Office of Research

206/543-4741 ................................................... 8-38

Dague, Bryan, EdD

University of New Hampshire

603/228-2084 ................................................... 1-31

Daunhauer, Lisa, ScD

Colorado State University

970/491-7870 ................................................... 4-18

Davies, Daniel K.

AbleLink Technologies, Inc.

719/592-0347 ................................................... 3-72

Davis, Maryann, PhD

University of Massachusetts Medical School

508/856-8718 ..................................................... 1-7

de Jong, Jim

University of Missouri at Columbia

800/949-4232 (V/TTY, in IA, KS, MO, 

and NE), 573/882-3600 (V/TTY) ...................... 7-9

Dean, David H., PhD

University of Richmond

804/289-8559 ................................................... 1-36

Deeny, Sean P., PhD

312/238-5651 ................................................... 8-12

DeRuyter, Frank, PhD

Duke University

919/684-6271 ................................................... 3-14

Deutsch, Anne, RN, PhD, CRRN

Rehabilitation Institute of Chicago (RIC)

312/238-2826 ................................................... 6-12

Devine, Jennifer M., MD

206/963-5638 ................................................... 8-15

Dewald, Julius, PhD

Northwestern University

312/503-4435 ................................................... 3-35
Principal Investigators

D-6

Dikjers, Marcel, PhD

Mount Sinai School of Medicine

212/659-8587 ................................................... 2-13

Dikman, Suriyya, PhD

University of Washington

206/221-6511 ................................................... 2-88

Ding, Dan, PhD

University of Pittsburgh

412/954-5287 ................................................... 8-33

Donovan, William, MD

The Institute for Rehabilitation and 

Research (TIRR)

713/797-5946 (V)|713/797-5790 (TTY).......... 2-41

Doucet, Barbara M., PhD

409/747-1636 ................................................... 8-16

Dreer, Laura E., PhD

University of Alabama at Birmingham

205/325-8681 ................................................... 2-72

Drum, Charles, JD, PhD

University System of New Hampshire

603/862-4320 ................................................... 2-12

Dyson-Hudson, Trevor, MD

Kessler Medical Rehabilitation Research 

and Education Corporation (KMRREC)

973/324-3567 ................................................... 2-38

Ehlhardt Powell, Laurie, PhD

Western Oregon University, Teaching 

Research Institute

541/346-0572 ..........................................3-49; 4-38

Elbogen, Eric, PhD

University of North Carolina at Chapel Hill

919/972-7451, ext. 3 ........................................ 4-32

Ellis, Michael D., DPT

Northwestern University

312/503-4435 ................................................... 3-35

Englander, Jeffrey, MD

Santa Clara Valley Medical Center 

(SCVMC)

408/793-6446|408/793-6433............................ 2-45

Eskow, Karen, PhD

Towson University

410/704-2238 ..................................................... 5-6

Esselman, Peter C., MD

University of Washington

206/744-3140 ..........................................2-25; 2-26

Falco, Ruth, PhD

Portland State University

503/725-4687 ................................................... 4-38

Fann, Jesse R., MD, MPH

University of Washington

206/685-4280 ................................................... 2-87

Farkas, Marianne, ScD

Boston University

617/353-3549 ............................................1-5; 4-27

Farrell, Todd, PhD

Liberating Technologies, Inc.

508/893-6363, x14 ........................................... 3-62

Fatone, Stefania, PhD

Northwestern University

312/503-5700 ................................................... 3-11

Fauerbach, James A., PhD

Johns Hopkins School of Medicine

410/550-0894 ................................................... 2-21

Fidler, Deborah, PhD

Colorado State University

970/491-7870 ................................................... 4-18

Fisher, Nadine M., EdD

State University of New York (SUNY) at 

Buffalo

716/829-6724 ................................................... 2-83
Principal Investigators

D-7

Fletcher, Valerie

Institute for Human Centered Design, Inc.

617/695-1225, ext. 226 ...................................... 7-3

Flexer, Robert, PhD

Kent State University

330/672-0584 ................................................... 4-36

Foley, Susan, PhD

University of Massachusetts Boston

617/287-4317 ..............................................1-3; 1-6

Frieden, Lex, LLD

The Institute for Rehabilitation and 

Research (TIRR)

800/949-4232 (V/TTY, in AR, LA, NM, 

OK, and TX), 713/520-0232 (V), 713/520-

5136 (TTY)...............................................7-8, 7-13

Friedman, Nizan

Flint Rehabilitation Devices, LLC

203/560-8832 ................................................... 3-56

Frost, Karen L., PhD

University of Louisville

502/852-0279 ................................................... 3-41

Gallagher, Tanya M., PhD

Syracuse University

217/333-2131 ................................................... 1-19

Gard, Steven, PhD

Northwestern University

312/503-5700 ................................................... 3-11

Garfinkel, Steven, PhD 

American Institutes for Research

919/918-2306; 703/993-1940............................. 6-6

Giacino, Joseph T., PhD

Spaulding Rehabilitation Hospital

617/573-2757 ................................................... 2-52

Gibran, Nicole., MD

University of Washington

206/744-3140 ..........................................2-25; 2-26

Gibson, Paul

Advanced Medical Electronics 

Corporation

763/515-5360 ................................................... 3-65

Giesen, Marty

Mississippi State University

662/325-2001 ..................................................... 1-8

Glang, Ann E., PhD

Western Oregon University, Teaching 

Research Institute

541/346-0594 ..........................................3-50; 4-16

Glenn, Margaret K., EdD

304/685-9408 ..................................................... 8-9

Goldberg, Larry

WGBH Educational Foundation

617/300-3722 ................................................... 3-42

Gonzalez, Roseann, PhD

University of Arizona

520/621-3615 ................................................... 4-17

Gordon, Wayne A., PhD

Mount Sinai School of Medicine

212/659-9372 ................................................... 2-59

Gotto, George S., PhD

Curators of the University of Missourion behalf of UMKC

816/235-8845 ................................................... 1-29

Gower, Wendy Strobel

Cornell University

800/949-4232 (V/TTY in NY, NJ, PR, 

and VI), 607/255-6751....................................... 7-4

Graves, Daniel E., PhD

University of Louisville Research 

Foundation, Inc

502/582-7443 ..........................................2-34; 2-41

Groah, Suzanne L., MD

MedStar Health Research Institute

202/877-1196 ..................................................... 2-4
Principal Investigators

D-8

Haarbauer-Krupa, Juliet, PhD

Children’s Healthcare of Atlanta, Inc.

404/785-3284 ................................................... 4-19

Hagner, David, PhD

University of New Hampshire

603/228-2084 ..........................................1-30; 1-31

Hall, Jean P., PhD

University of Kansas Center for 

Research

785/864-7083 ................................................... 1-28

Hammel, Joy , PhD, OTR/L

The Institute for Rehabilitation 

and Research (TIRR)

713/520-0232, 312/996-3513.......................... 7-13

Hammond, Flora M., MD

Indiana University

317/329-2106 ................................ 2-14; 2-51; 2-61

Hanks, Robin A., PhD

Wayne State University

313/745-9763 ................................................... 2-53

Harbour, Wendy S., PhD

Syracuse University

315/443-1288 ................................................... 4-31

Harkema, Susan, PhD

University of Louisville Research 

Foundation, Inc

502/582-7443 ................................................... 2-34

Harrington, Charlene, PhD, RN

University of California at San 

Francisco

415/476-4030 ..................................................... 4-3

Harris, Gerald F., PhD

Marquette University

414/288-1586 ................................ 3-20; 8-39; 8-40

Harrison-Felix, Cynthia, PhD

Craig Hospital

303/789-8565 ..........................................2-46; 2-48

Hart, Tessa, PhD

Albert Einstein Healthcare 

Network

215/663-6153 ..........................................2-64; 2-65

Hassouneh, Dena, PhD

Oregon Health and Science 

University

503/494-2714 ................................................... 2-84

Hayner, Stephanie, PhD

Santa Clara Valley Medical Center 

(SCVMC)

408/793-6446, 408/793-6433.......................... 2-45

Heckman, Jeffrey, MD

New York University School of 

Medicine

212/263-6037 ................................................... 3-47

Heinemann, Allen W., PhD

Rehabilitation Institute of Chicago 

(RIC)

312/238-0764 .................................. 2-33; 6-3; 8-20

Heitzman-Powell, Linda S., PhD

University of Kansas Medical 

Center

913/945-6604 ..........................................3-40; 4-21

Helfrich, Christine A., PhD

Boston University

617/353-8947 ................................................... 4-24

Heller, Tamar, PhD

University of Illinois at Chicago

312/413-1647 ............................................4-4; 8-21

Hendricks, D.J., EdD

Syracuse University

304/293-7186, ext. 111..................................... 1-19

Herbert, James T., PhD

Pennsylvania State University

814/865-1887 ................................................... 1-35
Principal Investigators

D-9

Herndon, David, MD

University of Texas Medical Branch

409/770-6731 ................................................... 2-18

Hewitt, Amy, PhD

University of Minnesota

612/624-6328 ..................................................... 4-9

Hoffman, Jeanne M., PhD

University of Washington

206/731-3665 ..........................................2-42; 2-88

Hornyak, Joseph, MD

University of Michigan

734/615-1904 ................................................... 4-28

Houtenville, Andrew J., PhD

University of New Hampshire

603/862-4004 ............................................1-10; 5-3

Huang, He, PhD

University of Rhode Island

401/874-2385 ................................................... 3-38

Hudson, Lesley M.

Shepherd Center, Inc.

404/350-7582 ................................................... 2-31

Huggins, Jane, PhD

University of Michigan

734/936-7170 ................................................... 3-43

Hunter-Zaworski, Katharine, PhD

Oregon State University

541/737-4982 ................................................... 3-48

Hurdich, Jason

Vcom3D, Inc.

407/737-7310 ..........................................3-73; 3-74

Ipsen, Catherine, PhD

University of Montana

406/243-4562 ................................................... 4-30

Jackson, Amie B., MD

University of Alabama at Birmingham

205/934-3330 ................................................... 2-27

Jensen, Mark P. PhD

University of Washington

206/543-3185 ..................................................... 2-9

Jette, Alan M., PhD

Trustees of Boston University, BUMC 

HDRI

617/638-1985 ..........................................2-36; 8-26

Johansson, Jennifer

Liberating Technologies, Inc.

508/893-6363, x15 ........................................... 3-63

Johnson, Kurt PhD

University of Washington

206/543-3677 ..........................................6-13; 8-37

Johnson-Greene, Douglas E., PhD

University of Miami

305/243-8472, 305/243-4569........................... 2-49

Jones, Erica C., MPH

Public Health Institute

510/285-5600 (V/TTY).................................... 7-12

Jones, Kevin

AventuSoft LLC

352/214-3481 ................................................... 3-61

Jones, Robin A.

University of Illinois at Chicago

312/996-1059 ..................................................... 7-7

Kaelin, Daryl, MD

University of Louisville Research 

Foundation, Inc

502/582-7443 ................................................... 2-34

Kapperman, Gaylen, EdD

Northern Illinois University

815/895-3078 ................................................... 3-39

Kartin, Deborah, PT PhD

University of Washington

206/598-5338 ................................................... 8-37
Principal Investigators

D-10

Kaufman, Jacqueline, PhD

University of Michigan

734/936-7052 ................................................... 2-80

Kaye, Stephen H., PhD

University of California at San Francisco

415/476-4030 ..................................................... 4-3

Keating, Thomas, PhD

Assistech Systems, LLC

541/342-3763 ................................................... 4-43

Keysor, Julie, J., PhD

Trustees of Boston University

617/353-2735 ..................................................... 4-7

Kiernan, William E. PhD

University of Massachusetts Boston

617/287-4311 ................................................... 1-16

King, Tricia, PhD

Children’s Healthcare of Atlanta, Inc.

404/785-3284 ................................................... 4-19

Kirshbaum, Megan, PhD

Through the Looking Glass

800/644-2666, 510/848-1112 (V), 

510/848-1005 (TTY)...............................4-13; 4-14

Kloos, Bret, PhD

University of South Carolina

803/777-2704 ................................................... 4-41

Kowalske, Karen

The University of Texas Southwestern 

Medical Center

214/648-2240 ................................................... 2-23

Kowalske, Karen

The University of Texas 

Southwestern Medical Center

214/648-2240 ................................................... 2-24

Kraft, George H., MD

University of Washington

206/543-7272 ..................................................... 2-8

Kramer, Jessica M., PhD

Trustees of Boston University

617/353-2702 ................................................... 4-26

Krause, James S. PhD

Medical University of South 

Carolina

843/792-1337 ................................1-21; 2-7; 2--85; 

2-86; 8-5; 8-36

Kreutzer, Jeffrey S., PhD

Virginia Commonwealth 

University

804/828-9055 ................................................... 2-69

Kruse, Doug, PhD

Syracuse University

732/445-5991 ................................................... 1-19

Kuiken, Todd A., MD, PhD

Rehabilitation Institute of Chicago 

(RIC)

312/238-1362 ................................................... 3-32

Lammertse, Daniel P., MD

Craig Hospital

303/789-8220 ................................................... 2-29

Lane, Joseph

University at Buffalo, The State 

University of New York

716/204-8606, ext. 211 ...................................... 6-7

LaPlante, Mitch, PhD

University of California at San 

Francisco

415/476-4030 ..................................................... 4-3

Larson, Sheryl, PhD

Regents of the University of 

Minnesota

612/624-6024 ................................................... 4-29

LeJeune, B.J.

Mississippi State University

662/325-2001 ..................................................... 1-8
Principal Investigators

D-11

Lenker, James, PhD

University at Buffalo, The State 

University of New York

716/829-5899 ................................................... 3-13

Leverenz, Paul

Easter Seals Wisconsin, Inc.

608/225-2394 ................................................... 3-53

Lezotte, Dennis C., PhD

University of Colorado Denver - 

Anschutz Medical Campus

303/724-4388 ................................................... 2-20

Li, Xiaoyan

312/925-5622 ................................................... 8-10

Lord, Sarah E., PhD

Trustees of Dartmouth College

603/448-0263 ................................................... 1-17

Lovell, Tom

Aspen Systems, Inc.

508/281-5322, ext. 237 .................................... 3-75

Lueking, Richard G., PhD

TransCen, Inc.

301/424-2002, ext. 230 .............................1-15; 7-5

Lui, John, PhD

The Board of Regents of the University of 

Wisconsin System

608/262-2137 ................................................... 1-13

Lynn Gerber, N., MD

American Institutes for Research

919/918-2306, 703/993-1940............................. 6-6

Maestas, Kacey Little, PhD

713/874-2030 ................................................... 8-17

Mahshie, James, PhD

The George Washington University

202/994-2052 ................................................... 3-28

Marino, J. Ralph, MD

Thomas Jefferson University

215/955-6579 ................................................... 2-39

Matrone, Kathe, PhD

University of Washington

425/771-7436 ................................................... 7-12

May, Michael

Sendero Group, LLC

888/757-6810 ..........................................3-24; 3-58

McCue, Michael, PhD

University of Pittsburgh

412/383-6589 ................................................... 3-17

McDonald, Craig M., MD

University of California at Davis

916/734-4280 ............................................2-3; 8-18

Meade, Michelle A., PhD

Regents of the University of Michigan

734/936-7205 ................................................... 3-44

Milchus, Karen

Georgia Institute of Technology

404/894-0393 ..................................................... 3-7

Miller, Nancy, PhD

University of Maryland at Baltimore 

County

410/455-3889 ..................................................... 5-5

Mirza, Mansha Parven Q.

312/503-6536 ................................................... 8-13

Mitchell, Helena, PhD

Georgia Institute of Technology

404/367-1348 ..................................................... 3-9

Molton, Ivan R., PhD

206/543-3602 ..............................................2-9; 8-8

Morrisette, David, PhD

Medical University of South Carolina

843/792-1337 ................................................... 2-85

Morse, Leslie R., DO

Spaulding Rehabilitation Hospital

617/573-2913 ................................................... 2-35
Principal Investigators

D-12

Mortimer, Bruce J.

Engineering Acoustics, Inc.

407/645-5444 ................................................... 3-60

Mullen-Gonzalez, Michelle

University of Medicine and Dentistry of 

New Jersey

908/889-2513 ..........................................1-18; 2-81

Mulroy, Sara, PhD

Rancho Los Amigos National 

Rehabilitation Center

562/401-7541 ..........................................2-28; 3-22

Munson, Leslie J., PhD

Portland State University

503/725-4687 ................................................... 4-38

Nash,Mark, PhD

University of Miami

305/243-9516 ..........................................2-30; 2-76

Newcomer, Robert, PhD

University of California at San Francisco

415/476-4030 ..................................................... 4-3

Nishii, Lisa H., PhD

Cornell University

607/255-4431 ................................................... 1-34

Nosek, Margaret A., PhD

Baylor College of Medicine

713/799-5086 ................................................... 3-51

Novack, Thomas A., PhD

University of Alabama at Birmingham

205/934-3283 ..........................................2-43; 2-44

Odum, Mark X.

HeiTech Services, Inc.

800/346-2742 (V), 301/459-5984 

(TTY), 301/459-5900 (V)................................ 6-15

O’Neill, John, PhD

Kessler Foundation

973/324-8387 ............................................1-11; 5-3

Oscar, Suman, PhD

University of Texas Medical Branch

409/770-6731 ................................................... 2-18

Oschwald, Mary, PhD

Portland State University

503/725-9602 ................................................... 4-40

Ottenbacher, Kenneth J., PhD

University of Texas Medical Branch

409/747-1637 ................................................... 8-34

Patton, Jim, PhD

Rehabilitation Institute of Chicago (RIC)

312/238-1277 ..........................................3-10; 3-12

Preston, Paul, PhD

Through the Looking Glass

800/644-2666, 510/848-1112 (V), 

510/848-1005 (TTY)...............................4-13; 4-14

Qibing, Pei

Regents of the University of California

310/825-4217 ................................................... 3-23

Ravesloot, Craig, PhD

University of Montana

406/243-2992 ................................................... 4-30

Razzano, Lisa A., PhD, CPRP

Chicago House and Social Service 

Agency

312/413-0323 ................................................... 1-27

Reichard, Amanda, PhD

University of Kansas

785/864-1618 ................................................... 2-78

Reihly, Timothy

Koronis Biomedical Technologies 

Corporation

763/515-5355 ................................................... 3-77

Reinkensmeyer, David J. PhD

Rehabilitation Institute of Chicago (RIC)

949/824-5218 ................................................... 3-12
Principal Investigators

D-13

Reisinger, Kim, PhD

San Francisco State University

415/338-6277, 708/672-6097........................... 3-21

Requejo, Philip S., PhD

University of Southern California

323/442-2903;............................... 2-10; 2-28; 3-22

Richards, Scott, J., PhD

University of Alabama at 

Birmingham

205/934-3330 ................................................... 2-27

Riehle, Timothy

Koronis Biomedical Technologies 

Corporation

763/515-5355 ................................................... 3-64

Rimmer, James H., PhD

The University of Alabama at 

Birmingham

205/975-9010 ............................................3-3; 4-16

Rogers, E. Sally, ScD

Boston University

617/353-3549 ............................................1-5; 8-25

Rogers, Mark W., PhD

University of Maryland at Baltimore

410/706-1771 ................................................... 8-24

Roth, Elliot J., MD

Rehabilitation Institute of Chicago 

(RIC)

312/238-4864 ............................................2-5; 2-50

Roush, Daniel

Eastern Kentucky University

859/622-8892 ................................................... 4-23

Rowland, Jennifer L., PhD, PT

University of Texas Medical Branch

409/772-9498 ................................................... 3-31

Russinova, Zlatka, PhD

Boston University

617/353-3549 ................................................... 8-25

Ryerson, Susan, PhD

National Rehabilitation Hospital

202/877-1889 ................................................... 3-27

Rymer, W. Zev, MD, PhD

Northwestern University

312/238-3919 ..........................................3-10; 8-22

Salmi, Patricia, PhD

Regents of the University of Minnesota

612/624-6024 ................................................... 4-29

Salzer, Mark, PhD

Temple University

215/204-7879 ................................................... 4-11

Sander, Angelle M., PhD

Baylor College of Medicine

713/873-3875 ..........................................4-12; 8-35

Sanford, Jon

Georgia Institute of Technology

404/894-1413 ............................................1-14; 3-7

Saunders, Lee PhD

Medical University of South Carolina

843/792-1337 ............................................2-7; 2-86

Saunders, Muriel D., PhD

University of Kansas

785/864-1618 ................................................... 2-78

Sawaki, Lumy, PhD

University of Kentucky Research Foundation

859/323-6226 ................................................... 2-79

Saxton, Marsha, PhD

World Institute on Disability

510/225-6349 ................................................... 2-74

Schimmels, Joseph M., PhD

Marquette University

414/288-3623 ................................................... 3-55

Schlosser, Ralf W., PhD

Northeastern University

617/373-3785 ................................................... 4-25
Principal Investigators

D-14

Schneider, Jeffrey C., MD

Spaulding Rehabilitation Hospital

617/573-2742 ................................................... 2-22

Sears, Harold H., PhD

Motion Control, Inc.

801/326-3434 ................................................... 3-80

Seekins, Tom, PhD

University of Montana

406/243-2654 ..................................................... 1-9

Sensinger, Jonathon W., PhD

Rehabilitation Institute of Chicago (RIC)

312/238-6036 ................................................... 3-36

Sesto, Mary D., PhD

University of Wisconsin-Madison

608/262-6966 ................................................... 1-37

Sevak, Purvi, PhD

Kessler Foundation

973/324-8387 ................................................... 1-11

Shafi, Shahid, MD

Baylor Research Institute

214/265-2607 ................................................... 2-66

Shenouda, Christian N., MD

713/291-6613 ................................................... 8-14

Sherer, Mark, PhD

The Institute for Rehabilitation and 

Research (TIRR)

713/799-7007 ..........................................2-67; 2-68

Sloan, Stan, CEO

Chicago House and Social Service Agency

312/413-0323 ................................................... 1-27

Smith, Roger O., PhD

University of Wisconsin–Milwaukee

414/229-5625 ................................................... 3-54

Sprigle, Stephen, PhD

Georgia Institute of Technology

404/385-4302 ..................................................... 3-8

Starling, Mike

National Public Radio

202/513-2484 ................................................... 3-26

Steinfeld, Aaron, PhD

Carnegie Mellon University

412/268-6346 ................................................... 3-16

Steinfeld, Edward, ArchD

University at Buffalo, The State 

University of New York

716/829-5899 ..........................................3-13; 3-16

Stock, Steven E.

AbleLink Technologies, Inc.

719/592-0347 ................................................... 3-59

Stone, John, PhD

The Research Foundation of SUNY 

on behalf of the University at Buffalo

716/829-6739 ..................................................... 6-9

Strauser, David, PhD

University of Illinois at UrbanaChampaign

217/244-3936 ................................................... 1-26

Summers, Jean Anne, PhD

The University of Kansas

785/864-4095 ................................................... 4-22

Swanson, Jeffrey W., PhD

Duke University

919/682-4827 ................................................... 4-33

Szlachcic, Yaga, MD

Rancho Los Amigos National 

Rehabilitation Center

562/401-7541 ................................................... 2-28

Tan, Faye C., MD

Baylor College of Medicine

713/873-3875 ................................................... 8-35

Tate, Denise G., PhD

University of Michigan

734/763-0971 ..........................................2-37; 8-27
Principal Investigators

D-15

Thoma, Colleen A.

804/761-7713 ..................................................... 8-7

Todd, Robert L.

Georgia Tech Research Corporation

404/894-9865 ................................................... 3-30

Todis, Bonnie, PhD

Western Oregon University

541/346-0595 ................................................... 4-37

Truong, Amy

The Sandbox Learning Company

800/704-7815 ................................................... 3-67

Tsaousides, Theodore, PhD

Mount Sinai School of Medicine

212/241-6547 ................................................... 8-31

Ulrich, Dale, PhD

University of Michigan

734/615-1904 ................................................... 4-28

van Roosmalen, Linda, PhD

LINC Design LLC

412/401-8194 ................................................... 3-68

Vanderheiden, Gregg C., PhD

University of Wisconsin-Madison

608/263-5788 ..........................................3-18; 3-19

Vogler, Christian, PhD

Gallaudet University

202/561-5257 ................................................... 3-19

Wade, Shari L., PhD

Children’s Hospital Medical Center

513/636-3370 ............................................2-6; 4-34

Wagner, Amy K., MD

University of Pittsburgh

412/648-6666 ................................................... 2-17

Wagner, Stacia, MSW

University of Illinois at UrbanaChampaign

217/244-3936 ................................................... 1-26

Walker, Janet

Portland State University

503/725-8313 ................................................... 4-10

Wehman, Paul, PhD

Virginia Commonealth 

University

301/424-2002, ext. 230 ..........1-15; 1-23; 1-24; 8-6

Westbrook, John, PhD

SEDL

800/761-7874 ................................ 1-22; 6-10; 6-11

White, Glen W., PhD

The University of Kansas

785/864-4095 .................................... 4-5; 4-6; 4-22

Whitley, Rob PhD

Dartmouth College

603/448-0263 ..................................................... 8-4

Williams, Steve, MD

Boston University Medical Center

617/638-7911 ................................................... 2-36

Wilson, Josephine F., DDS, PhD

Wright State University

937/775-1484 ................................................... 4-35

Winstein, Carolee J., PhD, PT

University of Southern California

323/442-2903 ................................................... 2-10

Wise, Justin, PhD

Children’s Healthcare of Atlanta, Inc.

404/785-3284 ................................................... 4-19

Wu, Yeongchi, MD

Northwestern University

312/503-5700 ................................................... 3-34

Yao, Jun, PhD

Northwestern University

312/908-8160 ................................................... 3-37

Zafonte, Ross D., DO

Spaulding Rehabilitation Hospital

617/573-2913 ................................................... 2-35
Principal Investigators

D-16

Zebrack, Brad, PhD

University of Illinois at Urbana-Champaign

217/244-3936 ................................................... 1-26

Zhou, Ping, PhD

Rehabilitation Institute of Chicago (RIC)

312/238-1365 ................................................... 2-77

Zondervan, Daniel, PhD

Flint Rehabilitation Devices, LLC

562/716-7277 ................................................... 3-57
Projects by Program Type
E-2

Projects by Program Type

ADA National Network Projects

ADA Network Knowledge Translation 

Center............................................................... 6-13

ADA Participation Action Research 

Consortium....................................................... 7-13

Great Lakes ADA National Network Regional 

Center - Region V .............................................. 7-7

Great Plains ADA National Network Regional 

Center - Region VII............................................ 7-9

Mid-Atlantic ADA National Network Regional 

Center - Region III............................................. 7-5

New England ADA National Network 

Regional Center - Region I ................................ 7-3

Northeast ADA National Network Regional 

Center - Region II .............................................. 7-4

Northwest ADA National Network Regional 

Center - Region X............................................ 7-12

Pacific ADA National Network Regional 

Center - Region IX........................................... 7-14

Rocky Mountain ADA National Network 

Regional Center - Region VIII......................... 7-10

Southeast ADA National Network Regional 

Center - Region IV............................................. 7-6

Southwest ADA National Network Regional 

Center - Region VI............................................. 7-8 

Advanced Rehabilitation Research Training 

Projects (ARRTs)

Advanced Rehabilitation Research Training ... 8-35

Advanced Rehabilitation Research Training 

(ARRT) in Pediatric to Adult Transition.......... 8-40

Advanced Rehabilitation Research Training 

Center on Neurocognitive Rehabilitation ........ 8-30

Advanced Rehabilitation Research Training 

Center on Neuro-musculoskeletal Rehabilitation ....

8-29

Advanced Rehabilitation Research Training in 

Neuromuscular and Neurodevelopmental 

Disorders.......................................................... 8-18

Advanced Rehabilitation Research Training in 

Neurorehabilitation .......................................... 8-19

Advanced Rehabilitation Research Training in 

Pediatric Mobility ............................................ 8-39

Advanced Rehabilitation Research Training 

Project in Rehabilitation Services Research .... 8-20

Advanced Rehabilitation Research Training: 

Interventions for Neurologic Communication 

Disorders.......................................................... 8-23

Advanced Research Training Program in 

Neurobehavioral Recovery and Intervention... 8-36

Advanced Research Training Program in 

Psychiatric Rehabilitation ................................ 8-25

Advanced Training in Translational and 

Transformational Research to Improve 

Outcomes for People with Disabilities ............ 8-21

Advanced Training on Outcomes in 

Rehabilitation Research (UW-ATORR)........... 8-38

Career Advancement for Engineers in the 

Science of Rehabilitation (CAESOR).............. 8-33

Interdisciplinary Rehabilitation Research 

Training Program............................................. 8-34

Mt. Sinai Advanced Rehabilitation Research 

Training............................................................ 8-31

Post Doctoral Training in Rehabilitation 

Outcomes Measurement Research................... 8-26

Rehabilitation Sciences for Engineers and 

Basic Scientists: An Advanced Training 

Program............................................................ 8-22

Rush Advanced Rehabilitation Research 

Training Postdoctoral Fellowship .................... 8-32

The UMHS/AACIL Rehabilitation Research 

Training Program............................................. 8-27

University of Maryland Advanced 

Neuromotor Rehabilitation Research 

Training (UMANRRT) .................................... 8-24

University of Washington Advanced 

Rehabilitation Research Training..................... 8-37

Burn Injury Model Systems

Boston-Harvard Burn Injury Model System.... 2-22

Johns Hopkins University Burn Injury 

Rehabilitation Model System (JHU-BIMS)..... 2-21

North Texas Burn Rehabilitation Model 

System (NTBRMS).......................................... 2-23

North Texas Burn Rehabilitation Model 

System (NTBRMS).......................................... 2-24

Northwest Regional Burn Model System 

Center............................................................... 2-26

University of Washington Burn Model 

System.............................................................. 2-25

Disability and Rehabilitation Research Projects 
E-3

Projects by Program Type

(DRRPs)

Building Knowledge and Capacity in the 

Rehabilitation and Recovery of African 

Americans Suffering from Severe Mental 

Illness: The Dartmouth-Howard 

Collaboration...................................................... 8-4

Center for International Rehabilitation 

Research Information & Exchange 

(CIRRIE-3) ........................................................ 6-9

Center for Transition to Employment for 

Youth with Disabilities..................................... 1-15

Center on Effective Delivery of 

Rehabilitation Technology by Vocational 

Rehabilitation Agencies................................... 1-20

Center on Health Outcomes Research and 

Capacity Building for Underserved 

Populations with SCI and TBI........................... 8-5

Center on Knowledge Translation for 

Technology Transfer .......................................... 6-7

Classification and Measurement of Medical 

Rehabilitation Interventions............................. 2-13

Collaboration on Mobility Training 

(COMIT).......................................................... 2-16

Controlled Trial of Venlafaxine XR for 

Depression After SCI: A Multisite Study........ 2-19

Demand-Side Employment Placement 

Models.............................................................. 1-19

Development Center to Enhance EvidenceBased Supportive Employment with a 

Technology-Based Management System......... 1-17

DRRP on Universal Design Practices to 

Enhance Work Outcomes................................. 1-14

Empowerment: Building Research 

Infrastructure Capacity....................................... 8-6

Facilitating Employment for Youth with 

Autism: A Replication Study of an Internship 

Model to Identify Evidence Based Practices... 1-24

Families with Disabilities Through the Life 

Cycle: Disability Culture Perspectives ............ 4-14

Health and Health Care Disparities Among 

Individuals with Disabilities............................ 2-12

Health Care Coordination for Individuals with 

Physical Disabilities: Critical Elements and 

Consumer Outcomes........................................ 2-11

Individualized Planning for the First Year 

Following Acute Rehabilitation Project........... 2-15

Manual and Training Program to Promote 

Career Development Among Transition Age 

Youth and Young Adults with Psychiatric 

Conditions........................................................ 1-18

Model Systems Knowledge Translation Center 

(MSKTC)........................................................... 6-6

Modulation of Catabolism Mediated by 

Catecholamine in Severely Burned Children: 

Analysis of Outcomes at Hospital Discharge, 

6 Months, 1, 2, 5, 10, 15 and 20 Years 

Post-Injury........................................................ 2-18

National Center for Parents with Disabilities 

and Their Families ........................................... 4-13

National Data and Statistical Center for the 

TBI Model Systems......................................... 2-46

National Spinal Cord Injury Statistical Center .. 6-5

National Spinal Cord Injury Statistical Center 

(NSCISC)........................................................... 6-4

Rehabilomics: Revolutionizing 21st Century 

TBI Care and Research .................................... 2-17

Research and Technical Assistance Center on 

Vocational Rehabilitation Program 

Management..................................................... 1-16

School Transition & re-Entry Program 

(STEP): Systematic Hospital-to-School 

Transition for Students with Traumatic Brain 

Injury................................................................ 4-16

SEDL Center on Knowledge Translation for 

Employment Research ..................................... 6-10

SEDL’s Vocational Rehabilitation Service 

Models for Individuals with Autism Spectrum 

Disorders.......................................................... 1-22

SEDL’s Center on Knowledge Translation for 

Disability and Rehabilitation Research............ 6-11

Successful Employment and Quality Work 

Life After Severe Disability Due to Spinal 

Cord Injury....................................................... 1-21

TBI Model System Collaborative Study of 

Amantadine for Post TBI Irritability and 

Aggression ....................................................... 2-14

Technology Access in Resource-Limited 

Environments................................................... 3-21

UCD Burn Model System Data Coordination 

Center (BMS/DCC) ......................................... 2-20

UIC Obesity Research Project on Prevalence, 

Adaptations, and Knowledge Translation in 

Youth and Young Adults with Disabilities 
E-4

Projects by Program Type

from Diverse Race/Ethnic Backgrounds.......... 4-15

Vocational Rehabilitation Service Models for 

Individuals with Autism Spectrum Disorders 

(VCU ASC Career Links)................................ 1-23

Fellowships (Distinguished)

Comparison of Transition Programs for 

Students with Intellectual Disability: Are 

Experiences, Supports, and Outcomes 

Different for those in Postsecondary Education 

Programs? .......................................................... 8-7

Explorative Study of Service Animal 

Utilization in the Workplace .............................. 8-9

Furthering Collaboration Among Disability 

and Aging Research Networks........................... 8-8

Fellowships (Merit)

Cardiovascular Fitness, Cognition, Mood, and 

Function in Community-dwelling People with 

Traumatic Brain Injury (TBI) .......................... 8-15

Cross-Sector Patterns of Treatment for 

Children with Autism....................................... 8-11

EEG Measures of Cognitive Workload in Prosthetic Use ......................................................... 8-12

Improving Functional Participation in Stroke.. 8-16

Individual, Household, and Community-Level 

Correlates of Social Participation for LowIncome Children with Disabilities: An 

Ecological Analysis Using Making 

Connections Survey Data................................. 8-13

Motor Unit Control Property Changes PostStroke: A High-Yield Surface EMG 

Decomposition Analysis .................................. 8-10

Omega Fatty Acids in Neurological 

Recovery .......................................................... 8-14

Parenting in Adults with Traumatic Brain 

Injury................................................................ 8-17

Field Initiated Projects (FIPs)

A Prospective National Study of Sustaining 

IPS Through Vocational Rehabilitation and 

Mental Health Collaboration............................ 1-33

A Randomized Controlled Trial of Two 

Vocational Models for Individuals with 

Psychiatric Disabilities and Criminal Justice 

Involvement ..................................................... 1-32

A Supported Employment Program for People 

with HIV/AIDS................................................ 1-27

Access Mainstreet: Universal Design 

Information Tool (UD-IT)................................ 3-54

Access to Electronic and Personal Health 

Records ............................................................ 3-42

Accommodations and ADA for PostSecondary Students with Disabilities............... 4-22

Addressing Self-Management Skills Through 

Electronic Gaming: Meeting the Needs of 

Underserved Individuals with SCI................... 3-44

Agricultural Assistive Technology Training .... 3-53

Ambulation and Secondary Complications: 

Participants with Chronic Spinal Cord 

Injury................................................................ 2-85

Amitriptyline to Prevent Headache after 

Traumatic Brain Injury..................................... 2-89

An Automatic Fitting Algorithm for Cochlear 

Implant ............................................................. 3-25

Auditory and Visual Working Memory in 

Children with Cerebral Palsy........................... 2-80

Beyond Hearing Aids: Training Resources to Improve the Capacity of VR Professionals 

Serving Consumers who are Hard of Hearing 

and Late Deafened ........................................... 1-25

Building the Foundation of Clinical Practice 

of EMG Pattern Recognition for Prosthetic 

Arm Control..................................................... 3-38

Cognitive Behavioral Therapy (CBT) for 

Caregivers of Operation Iraqi Freedom/

Operation Enduring Freedom (OIF/OEF) 

Service Members with Traumatic Brain Injury 

(TBI) ................................................................ 2-72

Combining Brain Stimulation and Peripheral 

Nerve Stimulation to Improve Upper 

Extremity Function After Severe Stroke.......... 2-79

Deaf Interpreter Certification Project: 

Certifying Intermediary Interpreters Who Are 

Deaf to Ensure Effective Communication for 

the Deaf, Hard of Hearing, and Deaf-Blind..... 4-17

Deaf Off Drugs and Alcohol: Evaluating a 

Technology-Assisted E-Therapy Program for 

SUD Treatment ................................................ 4-35

Defining Success: Web-Based Transition 

Training for Students with Traumatic Brain 
E-5

Projects by Program Type

Injury................................................................ 4-37

Design and Development of a Novel Bodypowered Prehensor and Hand .......................... 3-36

Determining the Efficacy of the SelfDetermined Career Development Model of Instruction to Improve Employment Outcomes 

for Adults with Developmental Disabilities..... 1-29

Developing a Relevant Instrument to Assess 

Caregiver Distress and Benefit in Spinal Cord 

Injury................................................................ 2-75

Developing College Campuses as Transition 

Settings for Students with Severe and Multiple 

Disabilities Aged 18-21.................................... 4-36

Developing Executive Functioning through 

Cognitive Remediation for College Students 

with Psychiatric Disabilities ............................ 2-81

Development of a Low-Cost Dilatancy-Based 

System for Orthotic Fabrication....................... 3-34

Development of a Passive Prosthetic Ankle 

with Energy Return that Matches that of a 

Natural Ankle ................................................... 3-55

Development of a Virtual Reality Weight 

Management Intervention for Women with 

Mobility Impairments...................................... 3-51

Development of a Web-Based Nemeth Code 

(Braille Mathematics) Tutorial for Use by Individuals Who Are Blind..................................... 3-39

Development of a Web-based Tool for 

Families Impacted by the Cognitive, 

Behavioral, and Social Challenges of 

Traumatic Brain Injury..................................... 3-50

Development of an Advanced Prosthetic 

Microcontroller System ................................... 3-32

Development of an Employment Consultation 

Staff Training Model for Workplace 

Inclusion........................................................... 1-30

Development of an Intelligent Assistive 

Robotic System for Individuals with Multiple 

Sclerosis........................................................... 3-29

Development of Quality Measures for PostStroke Rehabilitation ....................................... 6-12

Do Animations Facilitate Symbol 

Understanding in Children with Autism? ........ 4-25

Effects of Resistive Respiratory Muscle 

Training on Respiratory Function, Functional 

Performance, Fatigue, and Quality of Life in 

Individuals with Multiple Sclerosis................. 2-83

Electronic Tactile Displays for Braille Text 

and Graphics .................................................... 3-23

Enhancing Outcome-Based Performance 

Measures for the Public Vocational 

Rehabilitation Program: Developing Return 

on Investment Models...................................... 1-36

Enhancing Written Communication in Persons 

with Aphasia: A Clinical Trial.......................... 4-20

Evaluating the Efficacy of an Occupational Intervention Targeting Young Adult Brain Tumor 

Survivors.......................................................... 1-26

Evaluation of “Project TEAM (Teens making 

Environmental and Activity Modifications)”: 

Effectiveness, Social Validity, and 

Feasibility......................................................... 4-26

Evaluation of a Training Program to Enhance 

Clinical Supervision of State Vocational 

Rehabilitation Supervisors............................... 1-35

Examination of the Use of a Spanish Version 

of the Online and Applied System for 

Intervention Skills (OASIS) Training Program 

with Parents of Children with an Autism 

Spectrum Disorder ........................................... 4-21

Executive Function and Participation in Daily 

Life in Children with Down Syndrome ........... 4-18

Experimental Evaluation of the Online and Applied System for Intervention Skills (OASIS) 

Training Program Using Video-Conferencing 

for Parents of Children with an Autism 

Spectrum Disorder ........................................... 3-40

Experimental Research on Pedestrian and 

Evacuation Behaviors of Individuals with 

Disabilities; Theory Development Necessary 

to Characterize Individual-Based Models........ 3-52

Falls-Based Training to Improve Balance and 

Mobility Post-Stroke........................................ 2-73

Global Access Information Navigator ............. 3-24

GPS-TBI: Generalizing Problem Solving 

Strategies to Everyday Environments 

Following TBI.................................................. 4-38

Health Care Disparities in Access and 

Utilization among Individuals with 

Disabilities......................................................... 5-5

Impact of Prism Adaptation Therapy for 

Spatial Neglect on Home and Community Outcomes ............................................................... 3-46

Impact of the Great Recession and Its 

Aftermath on Public Spending and Services for 

Persons with Disabilities: A 50 State Study, FY 
E-6

Projects by Program Type

2009-13 .............................................................. 5-4

Impacts and State Utilization of HCBS Waiver 

Services for Families and Children with 

Autism................................................................ 5-6

Implementing Psychiatric Advance Directives 

with Peer Specialist Facilitators....................... 4-33

Improved Weight Bearing Evaluation of Knee 

Osteoarthritis.................................................... 3-45

Improving Money Management Skills in 

Veterans with Psychiatric Disabilities.............. 4-32

Improving New Learning and Memory in TBI: 

Applying fMRI to Measure Outcome .............. 2-82

Improving Trauma Outcomes: A Goal Management Approach................................................. 4-42

Improving Work Ability Among Breast Cancer 

Survivors.......................................................... 1-37

In-depth Assessment of Wheelchair Ramp 

Activities and Incidents on Public Transit 

Buses................................................................ 3-41

Investigating Environmental Factors Affecting 

Community Integration.................................... 4-41

Language and Literacy Outcomes of Preschool 

Children with Traumatic Brain Injury.............. 4-19

Life Skills: Transitioning from Homelessness 

and Isolation to Housing Stability and 

Community Integration.................................... 4-24

Modular Orthoses Prescription System 

(MOPS)............................................................ 3-22

Natural History of Headache Following Mild 

Traumatic Brain Injury..................................... 2-88

NEW DOOR: Nutrition, Exercise, Weight 

Management & Disability Obesity Options 

and Resources .................................................. 2-74

Noninvasive Examination of ALS Using 

Surface EMG ................................................... 2-77

Organizational Practices to Increase 

Employment Opportunities for People with 

Disabilities: The Power of Social Networks.... 1-34

Over-Ground Gait Training with a Novel 

Dynamic Body-Weight Support System.......... 3-27

Parent-Infant Interaction Project (PIIP)........... 4-38

Participation Interference Patterns: 

Investigating the Relative Impact of Pain and 

Environmental Barriers on Participation ......... 4-30

Participation, Subjective Well Being, Health, 

and Spinal Cord Injury:A 40-Year 

Longitudinal Study........................................... 2-86

Partnerships in Wellness: Training and 

Technical Assistance Model............................. 4-29

Peer-to-Peer Project: A Peer Support Network 

for Students with Significant Intellectual and 

Developmental Disabilities in Higher 

Education ......................................................... 4-31

Preparations for In-Home Testing of BrainComputer Interfaces Operating Assistive 

Technology....................................................... 3-43

Promoting Adoption and Implementation of 

the Healing Pathways Program to Reduce 

Depressive Symptoms in Women with 

Physical Disabilities......................................... 2-84

Prosody and Voice Characteristics of Children 

with Cochlear Implants.................................... 3-28

Randomized Field-Test of the Internet-based 

Safer and Stronger Program for Women with 

Disabilities....................................................... 4-40

Researching Accessibility Gaps in Transit Hub 

Communication Systems and Standards.......... 3-48

Sleep-Disordered Breathing in Persons with 

Chronic Tetraplegia: Characterization and Intervention.............................................................. 2-76

Studying Treatments and Effectiveness of Prosthetic Systems (STEPS): Utilizing a Regional Collaborative Longitudinal Outcomes 

Database (CLOUD) ......................................... 3-47

Sustainable Implementation of FamilyCentered Transition Planning for Young 

Adults with Autism Spectrum Disorders......... 1-31

Telephone and In-Person Cognitive Behavioral 

Therapy for Depression After Traumatic Brain 

Injury................................................................ 2-87

TerpTube: An Accessible Online Portfolio for 

Deaf Mentors and Sign Language 

Interpreters....................................................... 4-23

The Captioned Braille Radio Initiative: 

Providing Emergency Information for 

Individuals who are Deaf-Blind....................... 3-26

The Development of a Commercial 

Rehabilitation Device to Regain Arm Function 

Following Stroke.............................................. 3-33

The Development of a Real Time Platform for 

Intuitive Control of Grasp and Release During 

Functional Arm Activities Following Stroke ... 3-37

The Effect of Resistance to ParticipantSupported Reaching on Workspace of the 
E-7

Projects by Program Type

Hand in Severe Chronic Stroke........................ 3-35

The Effects of a Bicycle Training Intervention 

on Health, Physical Activity, Sleep, and 

Community Participation in Youth with Down 

Syndrome and Autism Spectrum Disorders..... 4-28

The Nexus of Employment, Health and 

Disability: A Study of Health Status and 

Quality of Life Among Medicaid Buy-In 

Participants....................................................... 1-28

The TATE Project: Training Assistive 

Technology in the Environment....................... 3-49

Toolkit of Recovery Promoting Competencies 

for Mental Health Rehabilitation Providers..... 4-27

Video Gaming Technology to Promote Health 

and Fitness Among Adolescents with 

Disabilities....................................................... 3-31

Virtual Home Modifications Education 

Assistant (VHMEA) for Educators, Students, 

and Consumers................................................. 3-30

Web Therapy to Improve Outcomes After 

Traumatic Brain Injury in Young Children ...... 4-34

Weight Loss by Individuals with Physical 

Disabilities....................................................... 2-78

NIDRR Contracts

AbleData .......................................................... 6-16

National Rehabilitation Information Center 

(NARIC) .......................................................... 6-15

Rehabilitation Engineering Research Centers

Interactive Exercise Technologies and 

Exercise Physiology for People with 

Disabilities......................................................... 3-3

Machines Assisting Recovery from Stroke 

and Spinal Cord Injury for Reintegration into 

Society (MARS3)............................................. 3-12

Rehabilitation Engineering Research Center 

for Cognitive Rehabilitation .............................. 3-5

Rehabilitation Engineering Research Center 

for Communication Enhancement (AACRERC).............................................................. 3-14

Rehabilitation Engineering Research Center 

for Prosthetics and Orthotics............................ 3-11

Rehabilitation Engineering Research Center 

for Successful Aging with Disability: 

Optimizing Participation Through Technology 

(OPTT-RERC) ................................................. 2-10

Rehabilitation Engineering Research Center 

for Universal Interface and Information 

Technology Access........................................... 3-18

Rehabilitation Engineering Research Center 

for Wheeled Mobility in Everyday Life............. 3-8

Rehabilitation Engineering Research Center 

for Wireless Technologies.................................. 3-9

Rehabilitation Engineering Research Center 

on Accessible Public Transportation................ 3-16

Rehabilitation Engineering Research Center 

on Hearing Enhancement................................... 3-6

Rehabilitation Engineering Research Center 

on Spinal Cord Injury....................................... 3-15

Rehabilitation Engineering Research Center 

on Technologies for Children with Orthopedic 

Disabilities....................................................... 3-20

Rehabilitation Engineering Research Center 

on Telecommunications Access....................... 3-19

Rehabilitation Engineering Research Center 

on Telerehabilitation ........................................ 3-17

Rehabilitation Engineering Research Center 

on Workplace Accommodations ........................ 3-7

Rehabilitation Engineering Research Center: 

Develop and Evaluate Technology for Low 

Vision, Blindness, and Multi-Sensory Loss....... 3-4

Rehabilitation Robotics and Telemanipulation 

Machines Assisting Recovery from Stroke 

Rehabilitation Engineering Research Center 

(MARS-RERC)................................................ 3-10

RERC on Universal Design in the Built 

Environment..................................................... 3-13

Rehabilitation Research and Training Centers 

(RRTCs)

Cornell RRTC on Employer Practices 

Related to Employment Outcomes Among 

Individuals With Disabilities............................ 1-12

Creating Evidence-Based Vocational 

Rehabilitation Service Delivery Practices ....... 1-13

Developing Strategies to Foster 

Community Integration and Participation 

(CIP) for Individuals with Traumatic Brain 

Injury................................................................ 4-12

ENhancing ACTivity and Participation for 

Persons with Arthritis (ENACT)........................ 4-7

Improved Employment Outcomes for 
E-8

Projects by Program Type

Individuals with Psychiatric Disabilities ........... 1-5

Learning and Working During the 

Transition to Adulthood ..................................... 1-7

Multiple Sclerosis Rehabilitation Research 

and Training Center............................................ 2-8

Personal Assistance Services (PAS) in the 21st 

Century............................................................... 4-3

Rehabilitation Research and Training Center 

for Community Living and Employment for 

Individuals with Intellectual and 

Developmental 

Disabilities......................................................... 4-9

Rehabilitation Research and Training Center 

for Pathways to Positive Futures: 

Supporting Successful Transition for Youth 

and Young Adults with Serious Mental Health 

Conditions........................................................ 4-10

Rehabilitation Research and Training Center 

in Neuromuscular Diseases (RRTCNMD)................................................................. 2-3

Rehabilitation Research and Training Center 

on Aging with a Physical Disability: 

Reducing Secondary Conditions and 

Enhancing Health and Participation, Including 

Employment....................................................... 2-9

Rehabilitation Research and Training Center 

on Aging with Developmental 

Disabilities: Lifespan Health and Function........ 4-4

Rehabilitation Research and Training Center 

on Community Living........................................ 4-6

Rehabilitation Research and Training Center 

on Disability in Rural Communities.................. 1-9

Rehabilitation Research and Training Center 

on Disability Statistics and Demographics........ 5-3

Rehabilitation Research and Training 

Center on Enhancing the Functional and 

Employment Outcomes of Individuals Who 

Experience a Stroke ........................................... 2-5

Rehabilitation Research and Training Center 

on Improving Measurement of 

Medical Rehabilitation Outcomes...................... 6-3

Rehabilitation Research and Training Center 

on Interventions for Children and 

Youth with TBI .................................................. 2-6

Rehabilitation Research and Training Center 

on Measurement and Interdependence in 

Community Living (RRTC/MICL).................... 4-5

Rehabilitation Research and Training Center 

on Participation and Community Living of 

Individuals with Psychiatric Disabilities ......... 4-11

Rehabilitation Research and Training Center 

on Secondary Conditions in Individuals with 

SCI ..................................................................... 2-7

Rehabilitation Research and Training Center 

on Secondary Conditions in Spinal Cord 

Injury.................................................................. 2-4

Rehabilitation Research and Training Center 

on Vocational Rehabilitation Research .............. 1-3

Rehabilitation Research and Training Center: 

Individual-Level Characteristics Related to 

Employment Among Individuals with 

Disabilities....................................................... 1-11

RRTC on Employment Outcomes for 

Individuals Who Are Blind or Visually 

Impaired ............................................................. 1-8

RRTC on Employment Policy and 

Measurement.................................................... 1-10

RRTC on Psychiatric Disability and 

Co-occurring Medical Conditions...................... 8-3

Vocational Rehabilitation and Developing 

Strategies to Meet Employer Needs in 

Changing Economic Environments ................... 1-6

Small Business Innovative Research Phase I 

(SBIR I)

Feasibility Evaluation of a Forward Facing 

Wheelchair Passenger Safety Station for Use 

in Large Accessible Transit Vehicles|............... 3-68

A Music-Based Rehabilitation Device for 

Training and Assessing Hand Function ........... 3-56

Accessible People Finder Application for 

Individuals with Visual Impairments............... 3-58

Blind Orientation and Mobility Training 

using Simulated Environment Audio............... 3-66

Brain Computer Interface to Enable Improved 

Communication Access.................................... 3-64

Development and Evaluation of Accessible 

Voter Education Software for Students and 

Adults with Intellectual Disabilities................. 3-59

Enhancing Conversation Intelligibility for 

Hearing Aid Users in Noisy Environments...... 3-65

Fluentbuddy Device to Enhance the Sensory 

and Motor Function of Individuals with 
E-9

Projects by Program Type

Speech Communication Disabilities................ 3-61

Pocket Potty Program - Toilet Training for 

Children with Developmental Disabilities....... 3-67

Resonating Arm Exerciser: Affordable Active 

Assistance for Arm Rehabilitation................... 3-57

Socket Pressure Monitoring System................ 3-62

Tactile Awareness Prompting (TAP) System ... 3-60

The Intelligent Brace: A Compliance 

Monitoring System for Scoliosis ..................... 3-63

Small Business Innovative Research Phase II 

(SBIR II)

Accessible Web Automation for People With 

Vision Impairments.......................................... 3-69

Cooling System for Multiple Sclerosis 

Patients............................................................. 3-75

Development of a Robust Sensory Feedback 

System for Persons with Lower-Limb Sensory 

Deficits............................................................. 3-71

Haptic Feedback Improvements for 

Prostheses......................................................... 3-79

Improved Hearing Aid Connection to Public 

Induction Loops............................................... 3-77

Indoor Route Following Tool for the Blind ..... 3-78

LifeWorks: Development of an a Web-Based 

Life Management Application for Individuals 

with Cognitive Disabilities and Caregivers ..... 4-43

Mobile Communication App for Deaf and 

Hard of Hearing ............................................... 3-73

Mobile Signing Math Dictionary with Mouth 

Morphemes ...................................................... 3-74

New Electro-Hydraulic Foot Prosthesis........... 3-80

Ubiquitous Web Access for People with Visual 

Impairments ..................................................... 3-70

Virtual Environment for Social Information 

Processing (VESIP) Phase II ........................... 3-76

Visual Impact Phase II: Using Cloud-Based 

Technology to Support Activities of Daily 

Living and Other Learning Needs to Facilitate 

Independence for Individuals with Intellectual 

Disabilities....................................................... 3-72

Spinal Cord Injury Model Systems

Frazier Rehabilitation and Neuroscience 

Spinal Cord Injury Model System 

(FRNSCIMS)................................................... 2-34

Midwest Regional Spinal Cord Injury Care 

System (MRSCIS) ........................................... 2-32

Midwest Regional Spinal Cord Injury Care 

System (MRSCIS) ........................................... 2-33

NERSCIC: Improving the Lives of People 

with SCI Across the Lifespan Through 

Innovative Science and Technology ................ 2-36

Northern New Jersey Spinal Cord Injury 

System.............................................................. 2-38

Northwest Regional Spinal Cord Injury 

System.............................................................. 2-42

Regional Spinal Cord Injury Center of the 

Delaware Valley ............................................... 2-39

South Florida Regional Spinal Cord Injury 

Model System .................................................. 2-30

Southeastern Regional Spinal Cord Injury 

Model System at Shepherd Center................... 2-31

Southern California Spinal Cord Injury 

Model System at Rancho Los Amigos 

National Rehabilitation Center ........................ 2-28

Spaulding-Harvard Spinal Cord Injury 

Model System .................................................. 2-35

Texas Model Spinal Cord Injury System......... 2-41

The Rocky Mountain Regional Spinal Injury 

System.............................................................. 2-29

UAB Spinal Cord Injury Model System.......... 2-27

University of Michigan Spinal Cord Injury 

Model System .................................................. 2-37

University of Pittsburgh Model Center on 

Spinal Cord Injury............................................ 2-40

Traumatic Brain Injury Model Systems

Brain Research in Aggression and Irritability 

Network (BRAIN): Building Evidence-Based 

Approaches to Managing Traumatic Brain 

Injury................................................................ 2-51

Carolinas Traumatic Brain Injury 

Rehabilitation and Research System 

(CTBIRRS)...................................................... 2-61

JFK-Johnson Rehabilitation Institute TBI 

Model System .................................................. 2-56

Mayo Clinic Traumatic Brain Injury Model 

System.............................................................. 2-54

Mayo Clinic Traumatic Brain Injury Model 

System.............................................................. 2-55

Michigan Traumatic Brain Injury Model 
E-10

Projects by Program Type

System (SEMTBIS)......................................... 2-53

Midwest Regional Traumatic Brain Injury 

Model System: Innovative Approaches to 

Improve Cognition, Function, and Community 

Living............................................................... 2-50

New York Traumatic Brain Injury Model 

System (NY-TBI-MS)...................................... 2-59

North Texas Traumatic Brain Injury Model 

System.............................................................. 2-66

Northern California Traumatic Brain Injury 

Model System of Care ..................................... 2-45

Northern New Jersey Traumatic Brain Injury 

System (NNJTBIS).......................................... 2-57

Northern New Jersey Traumatic Brain Injury 

System (NNJTBIS).......................................... 2-58

Ohio Regional TBI Model System .................. 2-62

Ohio Regional Traumatic Brain Injury Model 

System.............................................................. 2-63

Rusk Rehabilitation Traumatic Brain Injury 

Model System of Care at NYU........................ 2-60

South Florida Traumatic Brain Injury Model 

System (SF-TBIMS)........................................ 2-49

Spaulding-Harvard Traumatic Brain Injury 

Model System .................................................. 2-52

Texas TBI Model System of TIRR .................. 2-68

The Moss Traumatic Brain Injury Model 

System.............................................................. 2-64

The Moss Traumatic Brain Injury Model 

System.............................................................. 2-65

The Rocky Mountain Regional Brain Injury 

Model System (RMRBIMS)............................ 2-48

The Texas Traumatic Brain Injury Model 

System of TIRR ............................................... 2-67

UAB Traumatic Brain Injury Model System... 2-44

University of Alabama at Birmingham (UAB) 

Traumatic Brain Injury Model System (UAB 

TBIMS)............................................................ 2-43

University of Washington Traumatic Brain 

Injury Model System........................................ 2-70

University of Washington Traumatic Brain 

Injury Model System (UWTBIMS)................. 2-71

Virginia Commonwealth Traumatic Brain 

Injury Model System........................................ 2-69
Model System and Collaborative Projects

F- 3

Model System and Collaborative Projects

Burn Injury Model Systems

Boston-Harvard Burn Injury Model System.... 2-22

Johns Hopkins University Burn Injury 

Rehabilitation Model System (JHU-BIMS)..... 2-21

North Texas Burn Rehabilitation Model 

System (NTBRMS).......................................... 2-23

North Texas Burn Rehabilitation Model 

System (NTBRMS).......................................... 2-24

Northwest Regional Burn Model System 

Center............................................................... 2-26

University of Washington Burn Model 

System.............................................................. 2-25 

Spinal Cord Injury Model Systems

Frazier Rehabilitation and Neuroscience 

Spinal Cord Injury Model System 

(FRNSCIMS)................................................... 2-34

Midwest Regional Spinal Cord Injury Care 

System (MRSCIS) ........................................... 2-32

Midwest Regional Spinal Cord Injury Care 

System (MRSCIS) ........................................... 2-33

NERSCIC: Improving the Lives of People 

with SCI Across the Lifespan Through 

Innovative Science and Technology ................ 2-36

Northern New Jersey Spinal Cord Injury 

System.............................................................. 2-38

Northwest Regional Spinal Cord Injury 

System.............................................................. 2-42

Regional Spinal Cord Injury Center of the 

Delaware Valley ............................................... 2-39

South Florida Regional Spinal Cord Injury 

Model System .................................................. 2-30

Southeastern Regional Spinal Cord Injury 

Model System at Shepherd Center................... 2-31

Southern California Spinal Cord Injury 

Model System at Rancho Los Amigos 

National Rehabilitation Center ........................ 2-28

Spaulding-Harvard Spinal Cord Injury 

Model System .................................................. 2-35

Texas Model Spinal Cord Injury System......... 2-41

The Rocky Mountain Regional Spinal Injury 

System.............................................................. 2-29

UAB Spinal Cord Injury Model System.......... 2-27

University of Michigan Spinal Cord Injury 

Model System .................................................. 2-37

University of Pittsburgh Model Center on 

Spinal Cord Injury............................................ 2-40

Traumatic Brain Injury Model Systems

Brain Research in Aggression and Irritability 

Network (BRAIN): Building Evidence-Based 

Approaches to Managing Traumatic Brain 

Injury................................................................ 2-51

Carolinas Traumatic Brain Injury 

Rehabilitation and Research System 

(CTBIRRS)...................................................... 2-61

JFK-Johnson Rehabilitation Institute TBI 

Model System .................................................. 2-56

Mayo Clinic Traumatic Brain Injury Model 

System.............................................................. 2-54

Mayo Clinic Traumatic Brain Injury Model 

System.............................................................. 2-55

Michigan Traumatic Brain Injury Model 

System (SEMTBIS)......................................... 2-53

Midwest Regional Traumatic Brain Injury 

Model System: Innovative Approaches to 

Improve Cognition, Function, and Community 

Living............................................................... 2-50

New York Traumatic Brain Injury Model 

System (NY-TBI-MS)...................................... 2-59

North Texas Traumatic Brain Injury Model 

System.............................................................. 2-66

Northern California Traumatic Brain Injury 

Model System of Care ..................................... 2-45

Northern New Jersey Traumatic Brain Injury 

System (NNJTBIS).......................................... 2-57

Northern New Jersey Traumatic Brain Injury 

System (NNJTBIS).......................................... 2-58

Ohio Regional TBI Model System .................. 2-62

Ohio Regional Traumatic Brain Injury Model 

System.............................................................. 2-63

Rusk Rehabilitation Traumatic Brain Injury 

Model System of Care at NYU........................ 2-60

South Florida Traumatic Brain Injury Model 

System (SF-TBIMS)........................................ 2-49

Spaulding-Harvard Traumatic Brain Injury 

Model System .................................................. 2-52

Texas TBI Model System of TIRR .................. 2-68

The Moss Traumatic Brain Injury Model 

System.............................................................. 2-64

The Moss Traumatic Brain Injury Model 

System.............................................................. 2-65
F- 4

Model System and Collaborative Projects

The Rocky Mountain Regional Brain Injury 

Model System (RMRBIMS)............................ 2-48

The Texas Traumatic Brain Injury Model 

System of TIRR ............................................... 2-67

UAB Traumatic Brain Injury Model System... 2-44

University of Alabama at Birmingham (UAB) 

Traumatic Brain Injury Model System (UAB 

TBIMS)............................................................ 2-43

University of Washington Traumatic Brain 

Injury Model System........................................ 2-70

University of Washington Traumatic Brain 

Injury Model System (UWTBIMS)................. 2-71

Virginia Commonwealth Traumatic Brain 

Injury Model System........................................ 2-69

Collaborative Projects

Collaboration on Mobility Training 

(COMIT).......................................................... 2-16

Controlled Trial of Venlafaxine XR for 

Depression After SCI: A Multisite Study........ 2-19

Individualized Planning for the First Year 

Following Acute Rehabilitation Project........... 2-15

Modulation of Catabolism Mediated by 

Catecholamine in Severely Burned Children: 

Analysis of Outcomes at Hospital Discharge, 

6 Months, 1, 2, 5, 10, 15 and 20 Years 

Post-Injury........................................................ 2-18

Rehabilomics: Revolutionizing 21st Century 

TBI Care and Research .................................... 2-17

TBI Model System Collaborative Study of 

Amantadine for Post TBI Irritability and 

Aggression ....................................................... 2-14

Data and Knowledge Translation Centers

Model Systems Knowledge Translation Center 

(MSKTC)........................................................... 6-6

National Data and Statistical Center for the 

TBI Model Systems......................................... 2-46

National Spinal Cord Injury Statistical Center .. 6-5

National Spinal Cord Injury Statistical Center 

(NSCISC)........................................................... 6-4

UCD Burn Model System Data Coordination 

Center (BMS/DCC) ......................................... 2-20