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NIDRR Program Directory

Produced by The National Rehabilitation Information Center

A project funded by The National Institute on Disability and Rehabilitation Research, project number ED-05-CO-0007.

National Institute on Disability and Rehabilitation Research

Program Directory 2005

Produced by the

National Rehabilitation Information Center

Lanham, MD

Mark X. Odum

Director

Jessica H. Chaiken

Media and Public Education Manager

Catherine E. Graves

Media Specialist
The full text of this public domain publication is available at the NARIC’s home page at http://

www.naric.com and in alternate formats upon request. For more information, please contact us at:

NARIC

4200 Forbes Boulevard, Suite 202

Lanham, MD 20706

800/346-2742 or 301/459-5900 (Voice)

or 301/459-4263 (TTY).
Contents

Introduction .....................................................................................................i

Research and Development:

Employment Outcomes .................................................................................1

Health and Function.......................................................................................2

Technology for Access and Function............................................................3

Participation and Community Living ...........................................................4

Disability Demographics ...............................................................................5

Knowledge Translation

Knowledge Translation and Utilization.........................................................6

ADA Technical Assistance .............................................................................7

Capacity Building

Capacity Building for Rehabilitation Research Training ..............................8

Introduction 1

Introduction

The mission of the National Institute on Disability and Rehabilitation Research (NIDRR) is to generate, disseminate and promote knowledge that will improve the lives of persons with disabilities in their

communities. NIDRR conducts comprehensive and coordinated programs of research and related

activities to assist in the achievement of the full inclusion, social integration, employment, and independent living of people with disabilities. This edition of the NIDRR Program Directory lists all projects

funded by NIDRR during the 2005 fiscal year.

The contextual paradigm of disability and rehabilitation research, as described in NIDRR’s Long

Range Plan, 1999-2003, continues to frame the NIDRR research agenda. This paradigm overcomes

the limitations imposed by a medical model of disability. The new paradigm of disability maintains that

“disability is a product of the interaction between characteristics of the individual (e.g., conditions or

impairments, functional status, or personal and social qualities) and the characteristics of the natural,

built, cultural, and social environments.” (NIDRR Long-Range Plan 1999-2003.)

NIDRR’s Research Program

Under the proposed Long Range Plan for 2005, NIDRR-funded research activities fall within three

contextual domains: Research and Development, Capacity Building, and Knowledge Translation.

Within these arenas, NIDRR’s research is conducted via a network of individual research projects and

centers of excellence throughout the country. Most NIDRR grantees are universities or providers of

rehabilitation or related services. NIDRR’s largest funding programs are the Rehabilitation Research

and Training Centers (RRTCs), the Model Systems, and Rehabilitation Engineering Research Centers

(RERCs). NIDRR also makes awards for information dissemination and utilization centers and

projects, field initiated projects, research and development projects, advanced research training

projects, Mary E. Switzer fellowships and NIDRR scholars, small business innovative research, and

model systems of care. NIDRR also administers the Disability and Business Technical Assistance

Centers.

Disability and Rehabilitation Research Projects

The Disability and Rehabilitation Research Projects (DRRP) program allows for projects with special

emphasis on research, demonstrations, training, dissemination, utilization, and technical assistance.

Projects may include combinations of these activities. True to the mission of NIDRR, these projects

may develop methods, procedures, and rehabilitation technology to assist in achieving the full inclusion and integration into society, employment, independent living, family support, and economic and

social self-sufficiency of individuals with disabilities, especially individuals with the most significant

disabilities, or to improve the effectiveness of services authorized under the Rehabilitation Act.

Model Systems

NIDRR administers programs that have become world-renowned model systems of care for persons

with spinal cord injuries, burns, and traumatic brain injuries. The Model Systems establish innovative

projects for the delivery, demonstration, and evaluation of comprehensive medical, vocational, and

other rehabilitation services. The work of the Model Systems begins at the point of injury and ends
2 Introduction

with successful re-entry into full community life. These projects collect and contribute data on patient

characteristics, diagnoses, causes of injury, interventions, outcomes, and costs to a uniform national

database; participate in collaborative research with other Model System centers; and coordinate research efforts with other related grant recipients.

Advanced Rehabilitation Research Training Projects

The Advanced Rehabilitation Research Training (ARRT) Program (formerly known as the Research

Training Grants Program) expands the capacity of the field of rehabilitation research by providing

advanced training opportunities. These projects provide rehabilitation research training for persons

with clinical or other experience, who may be lacking certain formal research training. Grants are made

to institutions to recruit qualified persons with doctoral or similar advanced degrees with clinical,

management, or basic science research experience, and prepare them to conduct independent research

on problems related to disability and rehabilitation. This research training may integrate disciplines,

teach research methodology in the environmental or new paradigm context, and promote the capacity

for Disability Studies and rehabilitation science. These training programs must operate in interdisciplinary environments and provide training in rigorous scientific methods.

Rehabilitation Research and Training Centers

NIDRR’s Rehabilitation Research and Training Centers (RRTCs) conduct coordinated and integrated

advanced programs of research targeted toward the production of new knowledge, which may improve rehabilitation methodology and service delivery systems, alleviate or stabilize disabling conditions, or promote maximum social and economic independence for persons with disabilities. Operated

in collaboration with institutions of higher education or providers of rehabilitation or other appropriate

services, RRTCs serve as centers of national excellence in rehabilitation research. Also, they are

national or regional resources for research information for individuals with disabilities and the parents,

family members, guardians, advocates, or authorized representatives of the individuals. These centers

also conduct related training programs, including graduate, pre-service and in-service training. The

centers also disseminate and promote the utilization of research findings.

Rehabilitation Engineering Research Centers

Rehabilitation Engineering Research Centers (RERCs) conduct programs of advanced research of an

engineering or technical nature designed to apply advanced technology, scientific achievement, and

psychological and social knowledge to solve rehabilitation problems and remove environmental

barriers. Each center is affiliated with one or more institutions of higher education or nonprofit organizations. The RERCs’ work in a rehabilitation setting provides an environment for cooperative research

and the transfer of rehabilitation technologies into rehabilitation practice. Involved at both the individual and systems levels, RERCs seek to find and evaluate the newest technologies, products, and

methods that ultimately can benefit the independence of persons with disabilities and the universal

design of environments for all people of all ages. The centers also exchange technical and engineering

information worldwide and improve the distribution of technological devices and equipment to individuals who need them.
Introduction 3

Fellowships

Fellowships, named for the late Mary E. Switzer, give individual researchers the opportunity to develop new ideas and gain research experience. There are two levels of fellowships: Distinguished

Fellowships and Merit Fellowships. Distinguished Fellowships go to individuals of doctorate or

comparable academic status, who have had seven or more years of experience relevant to rehabilitation

research. Merit Fellowships are given to persons with rehabilitation research experience, but who do

not meet the qualifications for Distinguished, usually because they are in earlier stages of their careers.

Fellows work for one year on an independent research project of their design.

NIDRR Scholars

The Scholars program attempts to build research capacity by recruiting undergraduates with disabilities

to work in NIDRR-funded Centers and projects and introduces them to disability and rehabilitation

research issues. Scholars gain work experience and participating centers receive a small stipend. This

program is an innovative approach aimed at generating interest in research careers for persons with

disabilities.

ADA Technical Assistance Projects

NIDRR administers a network of grantees to provide information, training, and technical assistance to

businesses and agencies with responsibilities under the Americans with Disabilities Act (ADA). Ten

regional Disability and Business Technical Assistance Centers (DBTACs) are funded to provide

information and referral, technical assistance, public awareness, and training on all aspects of the

ADA. Several National Training Projects target particular groups, organizations, or subject areas for

ADA training and the ADA Technical Assistance coordinator contract assists all of the grantees with

their activities.

Small Business Innovative Research

Small Business Innovative Research (SBIR) grants help support the production of new assistive and

rehabilitation technology. This two-phase program takes a product from development to market readiness.

NIDRR Contracts

Through its contracts, NIDRR seeks improved methods, systems, products, and practices to add to its

work. The contracts are for specific activities related to management, research, and information dissemination.

NARIC and the NIDRR Program Directory

The Program Directory is compiled by the National Rehabilitation Information Center (NARIC).

NARIC functions as NIDRR’s library, providing the rehabilitation community with information and

referral services to help locate pertinent research related to specific areas of expertise. Since 1977,

NARIC has been the primary source of rehabilitation and disability information generated by NIDRR

funds, with special priority services to NIDRR staff and NIDRR-funded project staff.
4 Introduction

NARIC also produces REHABDATA, an index of disability and rehabilitation literature produced by

NIDRR grantees as well as commercial publishers. Copies of NIDRR-supported research products are

received by NARIC and added to the reference collection and REHABDATA database. Information

about holdings are available online at http://www.naric.com.

Neither NARIC nor NIDRR assumes liability for the Directory’s contents or the use thereof. NARIC

does not evaluate or certify the programs or products of the organizations listed in the Directory.

This Directory is not intended for use as a fiscal document to show how NIDRR funds are allocated;

its purpose is to display the range of programs that NIDRR supports. This listing is current as of

November 9, 2005. This directory may incude projects that have passed the indicated extension date.

NARIC operates under U.S. Department of Education contract ED-05-CO-0007.
Employment

For many people with disabilities, employment that is challenging, fulfilling, and

fairly and adequately compensated is the ultimate rehabilitation outcome. For those

individuals interested in workforce participation, employment shapes the lives of

individuals with disabilities at all stages of life. Employment research supported by

NIDRR for people with disabilities strives to identify proven job enhancements and

career building blocks to sustain them in the workforce. NIDRR supports studies to

improve knowledge of societal, environmental, individual, and behavioral factors

that serve as barriers or facilitators for employment.

Contents

Rehabilitation Research and Training Centers (RRTCs) ......................................... 1

Disability and Rehabilitation Research Projects ....................................................... 9

Field Initiated Projects (FIPs) ................................................................................. 13

NIDRR Program Directory FY 2005 - Employment 1-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Arkansas

Rehabilitation Research and Training Center on Improving Vocational

Rehabilitation Services for Individuals Who Are Deaf or Hard of

Hearing

University of Arkansas

College of Education and Health Professions

4601 West Markham Street

Little Rock, AR 72205

dwatson@uark.edu

http://www.uark.edu/deafrtc

Principal Investigator: Douglas Watson, PhD

Public Contact: 501/686-9691; Fax: 501/686-9698

Project Number: H133B010501

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $600,000; FY 02 $600,000; FY 03 $600,000; FY 04 $600,000; FY 05

$600,000

Abstract: This program conducts coordinated research and training to enhance the rehabilitation

outcomes of persons who are deaf or hard of hearing who are served by VR and related employment

programs. When appropriate, the unique needs of specific subgroups within this diverse and heterogeneous population are investigated. The ultimate goal of these efforts is to improve the capacity of the

VR system and related programs to address the career preparation, entry, maintenance, and advancement, as well as the community living needs, of the target population. Research activities include:

investigating the impact of changes in federal employment and rehabilitation legislation and policy on

the delivery of services to the target population; investigating the impact of business practices that

contribute to accessible work and workplace supports to enhance the employment of the target population; and identifying, developing, and assessing rehabilitation-related innovations that enhance employment and community living outcomes of the target population.
1-2 NIDRR Program Directory FY 2005 - Employment

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Mississippi

RRTC on Improving Vocational Rehabilitation Services for Individuals

Who Are Blind or Have Severe Visual Impairments

Mississippi State University

P.O. Box 6189

Mississippi State, MS 39762

schaefer@ra.msstate.edu

http://www.blind.msstate.edu

Principal Investigator: J. Elton Moore, EdD 662/325-2001

Public Contact: Kelly Schaefer 662/325-7825 (V); 662/325-8693 (TTY); Fax: 662/325-8989

Project Number: H133B010101

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $600,000; FY 02 $600,000; FY 03 $600,000; FY 04 $600,000; FY 05

$600,000

Other Funding: FY 01 $100,000 (Rehabilitation Services Administration); FY 02 $100,000 (RSA);

FY 03 $100,000 (RSA); FY 04 $100,000 (RSA)

Abstract: This program includes a variety of research and training activities that focus on improving

VR services for individuals who are blind or have severe visual impairments. Activities include: (1)

investigating and documenting the impact of changes in disability and employment legislation on the

unique employment-related needs of individuals who are blind or have visual impairments, as well as

their impact on service delivery options and policy; (2) investigating, documenting, and analyzing

existent state and federal data sets to determine different employment outcomes for persons who are

blind or have visual impairments and the relationship of the outcomes to client and service provider

characteristics; (3) investigating and documenting how state VR agencies, other public agencies, and

private service providers overcome environmental barriers in order to improve employment outcomes

for individuals who are blind or have visual impairments; (4) developing a national information and

resource referral database for the training needs of state business enterprise program facilities, developing and delivering training programs to meet the identified training needs, and developing measures

that can be used to evaluate the efficacy of the training; (5) conducting three conferences to train VR

staff on state-of-the-art information and computer technology for individuals who are blind or have

visual impairments; and (6) conducting a coordinated and advanced program of training in rehabilitation research focusing on blindness and low vision, including training in applied research methodology

that is designed to increase the number of qualified doctoral-level researchers working in the area of

blindness rehabilitation.
NIDRR Program Directory FY 2005 - Employment 1-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Montana

Rehabilitation Research and Training Center on Disability in Rural

Communities

University of Montana

The University of Montana Rural Institute:

A Center for Excellence in Disability Research, Education and Services

52 Corbin Hall

Missoula, MT 59812-7056

rural@ruralinstitute.umt.edu

http://rtc.ruralinstitute.umt.edu

Principal Investigator: Tom Seekins, PhD 406/243-2654

Public Contact: Diana Spas 888/268-2743 (V, information service only); 406/243-5467 (V); 406/243-

4200 (TTY); Fax: 406/243-2349

Project Number: H133B030501

Start Date: December 01, 2002

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $600,000; FY 04 $600,000; FY 05 $600,000

Abstract: The research conducted by this project improves the employment status of people with

disabilities in the rural U.S., enhances their ability to live independently, and advances the science of

rural disability studies. Four core areas comprise eleven research projects in rural employment and

economic development; rural health and disability; rural community transportation and independent

living; and rural policy foundations. Projects include: (1) develop scientific methods to measure how

rural environments influence an individual’s community participation; (2) collaborate with very small

rural businesses to employ people with disabilities; (3) improve rural transportation options; and (4)

create programs to prevent or improve secondary conditions. Other projects explore ways for new

partners, including faith-based organizations, to be involved in improving rural services. A training

program disseminates research findings, trains students, and sparks the creative engagement of

policymakers and social advocates. The innovative STATE (Same-Time Availability to Everyone)

policy requires that the project provide standard print publications to the general public only when at

least two alternative formats are also available to individuals with disabilities.
1-4 NIDRR Program Directory FY 2005 - Employment

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center for Economic Research

on Employment Policy for Persons with Disabilities

Cornell University

Program on Employment and Disability

School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853-3901

smb23@cornell.edu

http://www.ilr.cornell.edu/ped/dep/rrtc.html

Principal Investigator: Susanne Bruyère, PhD; Richard Burkhauser, PhD; David Stapleton, PhD

Public Contact: Susanne Bruyère, PhD 607/255-9536 (V); 607/255-2891 (TTY); Fax: 607/255-2763

Project Number: H133B980038

Start Date: December 16, 1998

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000; FY 02

$700,000; FY 03 $0 (No-cost extension through 4/30/2004); FY 04 $0 (No-cost extension through 9/

30/2004); FY 05 $0 (No-cost extension through 12/31/2005)

Abstract: Using principles of economics, this project conducts policy research on how environmental

factors influence the work outcomes of people with disabilities. Research also addresses critical aspects

of employment outcomes, recognizing the heterogeneity of people with disabilities, and explains the

importance of interactions among the multiplicity of programs intended to meet the employment needs

of people with disabilities. Components include: (1) a comprehensive analysis, using existing panel

data, of the current employment status of people with disabilities; (2) a longitudinal analysis of the

effects of labor market change on the employment and earnings of people with disabilities; (3) a

longitudinal analysis of return-to-work after the onset of a disability; (4) a longitudinal analysis of the

impact of civil rights protections on the employment and earnings of people with disabilities; (5)

identification and analysis of policies that foster or impede the participation of transitioning students in

rehabilitation or employment service programs; and (6) analysis of emerging and important issues

affecting the employment of people with disabilities.
NIDRR Program Directory FY 2005 - Employment 1-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)ui:

New York

Rehabilitation Research and Training Center on Employment Policy

and Individuals with Disabilities

Cornell University

Employment and Disability Institute

School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853-3901

smb23@cornell.edu

http://edi.cornell.edu/ped/dep/rrtc.html

Principal Investigator: Susanne Bruyère, PhD; Richard Burkhauser, PhD; David Stapleton, PhD

Public Contact: Susanne Bruyère, PhD 607/255-9536 (V); 607/255-2891 (TTY); Fax: 607/255-2763

Project Number: H133B040013

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 04 $700,000; FY 05 $700,000

Abstract: The ultimate goal of the Employment Policy Rehabilitation Research and Training Center

(EP-RRTC) is to increase the employment and economic self-sufficiency of people with disabilities

and improve the quality of their lives. The immediate purpose is to contribute to the success of the

transition from caretaker policies to economic self-sufficiency policies. Specific goals and objectives

are: completion of new research activities that will generate knowledge about the effects of past disability policy and other factors on economic self-sufficiency, the impact of current and future initiatives

designed to promote economic self-sufficiency, and/or the likely success of new policy options;

completion of 20 publishable papers and companion policy briefs; training of consumers via 12 or

more Washington-based Disability Policy Forums; training of 5 graduate students; a third-year conference; a conference volume; and technical assistance to consumers on policy research and evaluation

methods and data. Short-term project outcomes include: annual interpretation of updated employment

rate trends; a synthesis and critique of many relevant evaluation efforts; three or more significant policy

options and ideas for next steps; reviews of three or more significant policy or program successes;

detailed information on interactions between numerous programs and policies, and how they discourage employment; estimates of impacts of two public policies on employment and earnings for state VR

clients; estimates of the impact of the ADA on both employer provision of accommodations and job

retention after disability onset; estimates of the return to higher education for those with profound

hearing loss; and two additional analyses of the role that human capital plays in determining economic

self-sufficiency for adults with disabilities. Intermediate outcomes include use of this information in the

policy improvement effort, and long-term outcomes include policy changes that increase the economic

self-sufficiency of people with disabilities.
1-6 NIDRR Program Directory FY 2005 - Employment

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Improving

Employment Outcomes

Hunter College of CUNY

Research Foundation of CUNY

695 Park Avenue

New York, NY 10021

joneil@hunter.cuny.edu

Principal Investigator: John O’Neill, PhD 212/772-5188

Public Contact: Fax: 212/650-3198

Project Number: H133B040014

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 04 $699,981; FY 05 $699,973

Abstract: This Employment Service Systems Research and Training Center develops, enhances, and

utilizes partnerships to improve the quality of employment services, opportunities, and outcomes for

people with disabilities. Five research projects have been designed to meet this goal and examine

partnerships across public agencies, between not for-profit and public agencies, and between rehabilitation agencies and businesses. The Consortia for Employment Success (CES) creates and evaluates

fully integrated disability service provider networks in three local communities. The CES increases

access for people with disabilities to both effective, comprehensive placement services, and a wellmanaged and centralized employer network that will increase employment and career advancement

opportunities for persons with disabilities. The Workplace Socialization Model (WPS) supplements the

CES Model by focusing on job enhancement and retention. The WPS aims to extend the job tenure of

employees with a disability and other positive work outcomes including the employee’s job satisfaction, organizational commitment, and level of work culture competency, as well as the employer’s

satisfaction with the employee’s job performance. Identification of “Good Practices” Within Vocational

Rehabilitation is designed to identify a variety of good practices currently being used in the StateFederal VR system across the U.S. that facilitate consumer access to services and enhance employment

outcomes. Designing and Testing Comprehensive Employment Practice and Policy Initiatives within a

Vocational Rehabilitation State Agency develops and tests a model that leads to enhanced employment

outcomes. The model includes the “human capital” characteristics of persons with disabilities as well

as what vocational rehabilitation delivery systems add to these human capital factors to improve

outcomes. A Study of Disability Navigators in One-Stops collects data on Workforce Investment Act

regions in which Navigators operate and compares levels of customer satisfaction and employment

outcomes between regions that use Navigators and regions that have no such positions.
NIDRR Program Directory FY 2005 - Employment 1-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Ohio

Rehabilitation Research and Training Center on Substance Abuse,

Disability, and Employment

Wright State University

School of Medicine; Substance Abuse Resources and Disability Issues (SARDI)

3171 Research Park Boulevard, Room 255

Kettering, OH 45420

Jeremy.Trim@wright.edu

http://www.med.wright.edu/citar/sardi/rrtc_about.html

Principal Investigator: Dennis C. Moore, EdD

Public Contact: Connie Hart 937/775-1484 (V/TTY); Fax: 937/775-1495

Project Number: H133B040012

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 04 $699,998; FY 05 $699,983

Abstract: This RRTC builds on previous findings to positively impact persons with disabilities who

also experience substance use disorders, as well as the service providers upon whom they depend. The

highly integrated program of research addresses the following goals and objectives: (l) Promote widespread use of substance use disorder screening among persons with disabilities who utilize disabilityrelated employment services. This is accomplished by developing and validating a new substance

abuse screener called the “SASSI-VR”. Following two stages of development and validation, the

SASSI-VR is evaluated in three vocational rehabilitation (VR) programs on a statewide basis. (2)

Conduct a randomized clinical trial of a model of supported employment, Individualized Placement

and Support (IPS), to test its efficacy among persons with traumatic brain injury or other severe disabilities that also have a substance use disorder. The two trial sites are affiliated with rehabilitation

programs in the Wright State and Ohio State medical schools. Utilization of the IPS model with the

study populations holds tremendous potential or impacting services delivery for consumers who

experience very low rates of employment. (3) Research policy and practices relative to their impact on

VR services for persons with a disability and coexisting substance abuse. Serving as a critical complement to Rl, the roles of policies, statutes, guidelines, and VR service delivery practices will be investigated within the larger community of public agencies. (4) Investigate factors that specifically contribute

to unsuccessful case closure among consumers of VR services. This component studies recent VR

unsuccessful closures and their counselors, and the study has particular sensitivity to the role of “hidden” substance abuse among unsuccessful closures.
1-8 NIDRR Program Directory FY 2005 - Employment

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Virginia

Rehabilitation Research and Training Center on Workplace Supports

and Job Retention

Virginia Commonwealth University

Rehabilitation Research and Training Center on Workplace Supports

1314 West Main Street, Box 842011

Richmond, VA 23284-2011

tcblanke@vcu.edu

http://www.worksupport.com

Principal Investigator: Paul Wehman, PhD

Public Contact: Valerie Brooke, Director of Training 804/828-1851 (V); 804/828-2494 (TTY); Fax:

804/828-2193

Project Number: H133B040011

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 04 $699,981; FY 05 $699,973

Abstract: The purpose of the RRTC on Workplace Supports and Job Retention is to study those

supports which are most effective in the workplace for assisting persons with disabilities to maintain

employment and advance their careers. Research includes two long-term prospective randomized

experimental control research projects: (1) determining the efficacy of public/private partnerships, and

(2) determining the efficacy of business mentoring and career based interventions with college students

with disabilities. The RRTC is partnered with Manpower, Inc., several community rehabilitation

programs, and the VCU Business Roundtable. Additional projects look at disability management

practices, extended employment supports, job discrimination in employment retention, benefits planning and assistance, and workplace supports. These studies are done in conjunction with Equal Employment Opportunity Commission, the Society of Human Resource Professionals, and the U.S.

Chamber of Commerce.
NIDRR Program Directory FY 2005 - Employment 1-9

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Iowa

Model Distance-Learning Computer Training Program for Blind and

Visually Impaired Individuals

Iowa Department for the Blind

524 Fourth Street

Des Moines, IA 50309

assist@blind.state.ia.us

http://www.blind.state.ia.us/assist

Principal Investigator: Curtis Chong

Public Contact: 515/281-1361; Fax: 515/281-5781

Project Number: H133A010104

Start Date: December 01, 2001

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 01 $299,565; FY 02 $299,463; FY 03 $599,028; FY 04 $299,778; FY 05

$299,315

Abstract: This project creates a model distance-learning program that delivers computer training to

people who are blind or who have visual impairments. The purpose of this program is to increase IT

educational opportunities and employability in the IT field. Project objectives include: (1) developing a

model distance-learning computer training program for people who are blind that results in employment in the IT field; (2) developing 13 distance-learning computer training courses for individuals who

are blind or who have visual impairments and VR professionals; (3) training and preparing 150 individuals who are blind or who have visual impairments for Microsoft Office certification and thus

prepare them for entry-level IT positions; (4) training 50 people who are blind and VR professionals to

provide computer training to job seekers who are blind, thus increasing future IT educational opportunities for people who are blind and those who have visual impairments; and (5) disseminating training

materials and research results to agencies serving individuals who are blind or who have visual impairments.
1-10 NIDRR Program Directory FY 2005 - Employment

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Iowa

I.T. Works

University of Iowa

Law, Health, Policy, and Disability Center

431 Boyd Law Building

Iowa City, IA 52242

james-schmeling@uiowa.edu

http://disability.law.uiowa.edu

Principal Investigator: Peter D. Blanck, PhD, JD 319/335-9043

Public Contact: Michael Morris, JD; James Schmeling, JD 319/335-9043 (Blanck); 202/521-2930

(Morris); 319/335-8459 (Schmeling); Fax: 319/335-9098 (Blanck)

Project Number: H133A011803

Start Date: November 01, 2001

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $299,935; FY 02 $299,724; FY 03 $299,908; FY 04 $299,788; FY 05

$299,901

Abstract: The goal of the I.T. Works project is to identify barriers to and facilitators of the hiring,

retention, advancement, and wages of individuals with disabilities. Research shows that the percentage

of working-age individuals with disabilities in full- or part-time positions is substantially lower than the

percentage of working-age people without a disability, and there is a demand for trained IT workers.

Increasing the employment of individuals with disabilities in IT-related jobs would increase the employment of individuals with disabilities overall and reduce the shortage for trained IT workers. Research activities for this project include a theoretical model in which predictive measures include

environmental factors, organizational factors, attitudinal factors, and individual characteristics. Outcome measures in the model include hiring rate, advancement rate, retention rate, and wages of individuals with disabilities. Training activities allow for the distribution of the research findings to diverse

target audiences, including employers, IT trainers and professionals, persons with disabilities in diverse

employment settings, other researchers, and relevant policy-makers. Target audiences also include IT

employers, IT training certification bodies, human resource managers, community colleges and university continuing education programs, and Centers for Independent Living and other disability-related

organizations.
NIDRR Program Directory FY 2005 - Employment 1-11

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Mississippi

Persons Aging with Hearing and Vision Loss

Mississippi State University

Rehabilitation Research and Training Center on Blindness and Low Vision

P.O. Box 6189

Mississippi State, MS 39762

bjlejeune@colled.msstate.edu

http://www.blind.msstate.edu

Principal Investigator: B.J. LeJeune, MEd., RTC, CRC

Public Contact: 662/325-2001; 662/325-8693 (TTY); ; Fax: 662/325-8989

Project Number: H133A020701

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $500,000; FY 03 $500,000; FY 04 $500,000; FY 05 $500,000

Abstract: This project investigates strategies to improve outcomes for persons who are over 55 with

hearing and vision loss, especially those who have a sensory disability and acquire a second as a result

of the aging process. The project conducts a variety of research, development, training, and dissemination activities and evaluates both technology and model service delivery approaches for improving

employment and community integration options. A Participatory Action Research (PAR) Team provides guidance and direction. The project solicits direct input from key stakeholders as part of the

ongoing planning, development, and implementation of research activities. These activities include the

use of focus groups, a panel of experts, and a study sample that includes a nationally representative

sample of older individuals who are blind or visually impaired and losing their hearing, and those who

are deaf or hard of hearing and losing their vision. This is a collaborative project of the Rehabilitation

Research and Training Center on Blindness and Low Vision at Mississippi State University, San Diego

State University, and the Helen Keller National Center for Deaf-Blind Youths and Adults.
1-12 NIDRR Program Directory FY 2005 - Employment

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Missouri

Preparing Avenues for Competitive Employment in Information

Technology (PACE-IT) Project

University of Missouri/Columbia

Educational and Counseling Psychology

205 Lewis Hall

Columbia, MO 65211

hollidayg@missouri.edu

http://paceit.missouri.edu

Principal Investigator: Greg Holliday, PhD 573/882-8329

Public Contact: Lee Henson, Project Coordinator 573/884-7278; Fax: 573/884-3399

Project Number: H133A011802

Start Date: November 01, 2001

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $293,183; FY 02 $290,191; FY 03 $297,480; FY 04 $292,620; FY 05

$298,703

Abstract: Preparing Avenues for Competitive Employment in Information Technology (PACE-IT)

develops a comprehensive, person-centered system that assists local students with disabilities in their

transition to professional employment in IT-related careers following graduation. The project ensures

that students with disabilities at the University of Missouri-Columbia engage in experiential opportunities in IT-related work settings with appropriate support. Participants also receive individualized

accommodations, electronic portfolios, and professional mentoring in their chosen fields to enable them

to be competitive in the IT job market upon graduation. The partnership involves university student

services; departments of state government, other agencies, and government officials; and area businesses (totaling 21 entities).
NIDRR Program Directory FY 2005 - Employment 1-13

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

LET’S ROLL: Understanding and Responding to the Needs of People

with Disabilities and the Ticket-To-Work Program

DePaul University

College of Liberal Arts and Sciences

Psychology Department

2219 North Kenmore Avenue, Suite 420

Chicago, IL 60614

bhernan4@depaul.edu

Principal Investigator: Brigida Hernandez, PhD

Public Contact: 773/325-4840; Fax: 773/325-7888

Project Number: H133G030165

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: The mission of the project is threefold. First, the project builds scientific knowledge regarding the needs of people with disabilities as they pertain to the Ticket-to-Work program and, more

generally, vocational rehabilitation services. Second, there is a concentrated emphasis on examining the

diversity of needs based on racial/ethnic background and type of disability. Lastly, the project aims to

understand and address the capacity of employment networks and offices of rehabilitation services in

terms of their outreach and delivery of services.
1-14 NIDRR Program Directory FY 2005 - Employment

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Exploratory Study of the Relationship Between Stigma at the

Workplace and the Vocational Recovery of People with Psychiatric

Disabilities

Boston University

Center for Psychiatric Rehabilitation

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue

Boston, MA 02215

zlatka@bu.edu

http://www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133G030190

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $149,985; FY 04 $149,938; FY 05 $149,971

Abstract: The purpose of this project is to study the relationship between stigma of mental illness at

the workplace and the vocational recovery of persons with psychiatric disabilities. More specifically,

the project focuses, on one hand, on operationalizing the traumatic negative impact of stigma on mental

health consumers’ capacity to obtain and sustain competitive employment, and, on the other hand, on

the objective and subjective factors (i.e., supportive work environment, effective coping strategies, etc.)

that minimize the interference of stigma with the vocational recovery of persons with psychiatric

disabilities. In addition, the study explores the pivotal role of disclosure at the workplace in understanding the complex, multi-faceted relationship between stigma and the vocational recovery among persons

with serious mental illness whose disability is often invisible.
NIDRR Program Directory FY 2005 - Employment 1-15

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Development of Materials and Methods Needed to Deliver a Proven Job

Retention Vocational Rehabilitation Intervention

Boston University

School of Medicine

715 Albany Street, Room A203

Boston, MA 02118

sallaire@bu.edu

Principal Investigator: Saralynn J. Allaire, ScD

Public Contact: 617/638-5180; Fax: 617/638-5239

Project Number: H133G040216

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $136,876; FY 05 $111,005

Abstract: The purpose of the project is to maximize the full inclusion of persons with chronic diseases

at risk for work disability into employment and economic self-sufficiency. The project uses the knowledge and understanding obtained from a recently completed research study showing that a job retention vocational rehabilitation (VR) intervention developed for the study reduced job loss in a sample of

employed persons with serious rheumatic diseases. The approach to VR for the target population was

innovative in that its goal was to prevent work disability rather than try to correct it. The specific

intervention was innovative in that it incorporated strategies derived from both research and rehabilitation counseling expertise. The goal of the project is to develop the methods and materials needed by

organizations providing VR services to carry out the intervention tested in the recently completed

research study. Its short-term outcomes are increased ability of counselors to effectively deliver job

retention VR intervention to employed persons with chronic diseases, improved knowledge of how to

inform persons with chronic diseases of the availability of VR services, and increased awareness of the

intervention and the requirements for delivering it. The objectives of the project are as follows: (1) to

produce a Training Manual that contains information and materials needed to train counselors to carry

out the intervention; (2) to produce a User’s Manual that contains the materials needed by counselors

to carry out the intervention; (3) to assess the satisfaction of recipients with the intervention, including

its content; (4) to produce a Recruitment Manual that contains strategy information and materials

needed for reaching the target population; (5) to calculate intervention costs; and (6) to conduct dissemination activities to increase awareness of the value of the intervention and requirements for implementing it.
1-16 NIDRR Program Directory FY 2005 - Employment

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Montana

Self-Employment Technology Transfer (SETT)

University of Montana

Rural Institute on Disabilities

52 Corbin Hall

Missoula, MT 59812

nancy@ruralinstitute.umt.edu

http://ruralinstitute.umt.edu

Principal Investigator: Nancy Arnold, PhD

Public Contact: 406/243-2469; Fax: 406/243-2349

Project Number: H133G000189

Start Date: October 01, 2000

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $149,970; FY 01 $149,487; FY 02 $149,986; FY 04 $0 (No-cost extension

through 11/30/2005)

Abstract: The Self-Employment Technology Transfer (SETT) project has developed and field tested a

VR self-employment support model based on extensive research. This project is designed to develop,

demonstrate, and evaluate methods for facilitating the widespread adoption by practicing VR counselors of this empirically derived model of standards and practices in a cost-effective manner and in a

relatively short time. It is estimated that achieving this goal benefits 25,560 to 62,850 consumers of VR

services annually. Further it is believed that such a technology transfer model for disseminating empirically derived social technology from research into practice has the potential to shape the content,

methods, and goals of future disability and rehabilitation research. There has been an explosion of

interest in self-employment for people with disabilities. More than a half-million people with disabilities report owning their own businesses and people with disabilities are nearly twice as likely to be

self-employed as those in the general population. While self-employment is not for everyone, it clearly

is a viable option used by many. Yet, VR agencies nationally help fewer than 2.5 percent of their

consumer achieve self-employment. Research shows that few of the estimated 9,500 practicing VR

counselors have the knowledge or skills to support consumers who choose to pursue self-employment.

Anecdotal reports indicate that VR agencies and staff have a significant interest in developing methods

to respond to this consumer demand. While a few programs have served as models for promoting selfemployment, none are designed specifically for VR counselors or organized for such wide-scale

dissemination.
NIDRR Program Directory FY 2005 - Employment 1-17

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Hampshire

Cognitive Training and Supported Employment in Severe Mental

Illness

Dartmouth College

PRC, 105 Pleasant Street

Concord, NH 03301-3852

Principal Investigator: Susan McGurk

Public contact: 603/271-5747

Project Number: H133G050230

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 05 $149,736

Abstract: Impaired cognitive functioning is an important predictor of employment outcomes in persons with severe mental illness (SMI), and a common complaint in consumers participating in vocational rehabilitation, including those in supported employment. This project evaluates a new, pilot

tested and standardized intervention, the "Thinking Skills for Work" program is designed to help

people with SMI succeed in supported employment programs, including both getting and keeping jobs.

The Thinking Skills for Work program is aimed at improving the cognitive functioning of persons with

SMI involved in supported employment, and is based on a heuristic model of the interactions between

cognition, symptoms, work performance, and vocational services. According to the model, enhanced

cognitive functions improve both work outcomes and the efficiency of vocational services (i.e., fewer

support services needed per hour of consumer work). The Thinking Skills for Work program is delivered by a specialist who educates consumers about cognitive functioning and work, involves them in a

three-month program of computerized cognitive skills training, and works in collaboration with the

consumer and supported employment specialist to identify appropriate jobs, practice newly acquired

cognitive skills in work-related settings, and develop compensatory strategies for managing persistent

cognitive impairments.
1-18 NIDRR Program Directory FY 2005 - Employment

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Hampshire

15-year Course of Competitive Employment for People with Severe

Mental Illness

Dartmouth Medical School

Department of Psychiatry

2 Whipple Place, Suite 202

Lebanon, NH 03766

Principal Investigator: Robert E. Drake MD, PhD 603/448-0263

Public Contact: Fax: 603/448-3976

Project Number: H133G050181

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 05 $149,796

Abstract: Little is known about long-term employment among people with severe and persistent

psychiatric illnesses, such as schizophrenia or bipolar disorder, and vocational disabilities. Two small

pilot studies suggest that a large proportion of these individuals, when exposed to effective vocational

rehabilitation (VR) and supported employment services, do attain long-term jobs that are associated

with greater independence, economic self-sufficiency, and recovery, but a prospective, longitudinal

study is critically needed to confirm and amplify these findings. To address this issue, this study: (1)

examines the longitudinal course of competitive employment (any competitive job) and long-term jobs

(competitive employment lasting greater than one year) among people with severe mental illnesses; (2)

details the impact of VR services, supported employment, and other services on long-term employment; and (3) examines the correlates of long-term employment, including independence, economic

self-sufficiency, quality of life, and other aspects of recovery. The key objectives are to build a timeline

of work, earned and other income, benefits, independent living, social functioning, symptom control,

and quality of life over 15 years for each individual on the basis of multiple data sources; to link VR

and other service records with employment outcomes by statistical means and by self-report; and to

link employment outcomes with other manifestations of recovery, again by statistical means and by

self-report. The project uses timeline methods, longitudinal data methods, and narrative self-reports to

conduct these analyses. The outcomes of the study are to show that individuals with the most severe

psychiatric disabilities are able to attain high rates of competitive employment and long-term employment, that VR and other services are critical to successful long-term employment, and that long-term

employment is associated with independence, economic improvements, quality of life, and recovery.
NIDRR Program Directory FY 2005 - Employment 1-19

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

VRA-NET: Developing a Network of Trained Paraprofessionals to

Address Personnel Shortages in Vision Rehabilitation

Lighthouse International

111 East 59th Street

New York, NY 10022-1202

kseidman@lighthouse.org

Principal Investigator: Karen R. Seidman, MPA

Public Contact: 212/821-9465; Fax: 212/821-9705

Project Number: H133G050058

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $149,990

Abstract: This project pilot tests a state-of-the art, accessible, online, and mentored training program

with students and mentors in state and private agencies for the blind and those with visual impairments

around the nation. Lighthouse International’s VRA-Net development initiative is based on the successes of previous projects involving the development of both comprehensive curricula and an accessible online training program for Vision Rehabilitation Assistants. The overall goal is to address a

severe shortage of trained vision rehabilitation personnel, while increasing the availability of specialized vision rehabilitation services to meet the burgeoning population of adults with visual impairment

in the U.S. The objectives of the project are to demonstrate the effectiveness of an accessible, online,

mentored, and competency-based paraprofessional training program; promote the employment of

persons with visual impairments, other conditions, and from disadvantaged backgrounds by providing

a career path for these paraprofessionals in the field of vision rehabilitation; and evaluate and compare

the implementation of onsite and remote mentors during the online and mentored training process.
1-20 NIDRR Program Directory FY 2005 - Employment

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oklahoma

Development and Distribution of an Accessible E-Learning Authoring

System Software and Model Course for Vocational Rehabilitation

Services Personnel

University of Oklahoma

National Center for Disability Education and Training

106 Constitution, Building 158

Norman, OK 73072

rfcook@ou.edu

Principal Investigator: Rebecca Cook

Public Contact: 405/325-1073; Fax: 405/325-1632

Project Number: H133G030063

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 03 $149,991; FY 04 $149,964; FY 05 $149,938

Abstract: This project develops and distributes two products that improve e-learning accessibility

options and increase employment opportunities for people with severe disabilities. These products

directly benefit two groups: (1) Instructional designers, trainers in government and industry, and

educators receive an accessible e-learning authoring system. This customized authoring tool integrates

Section 508 accessibility standards into an engine that delivers multimedia content from an external

database. User-friendly templates and reusable interactive models have built-in accessibility options,

thus enabling non-programmers to develop accessible courseware with less time and expense. (2)

Vocational rehabilitation services and supported employment personnel receive The Job Development

Hour, an accessible model course on CD-ROM that teaches basic strategies of marketing and job

development for people with severe disabilities.
NIDRR Program Directory FY 2005 - Employment 1-21

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Virginia

Strategies People with Psychiatric Disabilities Use to Maintain

Employment and Build Careers

CESSI

6858 Old Dominion Drive

Suite 250

McLean, VA 22101

mkilleen@cox.net

http://www.cessi.net

Principal Investigator: Mary Killeen

Public Contact: 703/619-1703; Fax: 703/619-1702

Project Number: H133G020116

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05 $0 (No cost extension

through 02/28/2006)

Abstract: This project investigates the strategies individuals with psychiatric disabilities use to maintain employment over time. The majority of individuals with psychiatric disabilities who are working

find their work independently, without the help of specialized employment programs. Little is known

concerning the strategies they use to maintain employment over time. Research that has focused on

psychiatric disability and employment has looked solely at those populations who are currently attending or have attended vocational rehabilitation or specialized employment programs; individuals who

have been most successful at maintaining employment have not been consulted regarding the strategies

that worked best for them. This project explores a number of domains, including: (1) coping with

stigma in the workplace, (2) managing symptoms as well as medications and their side effects, (3)

making decisions regarding disclosure of psychiatric disability in the workplace, (4) negotiating workplace accommodations, (5) developing a social support network, (6) coping with relapse or re-hospitalization with regard to employment, and (7) obtaining education or training (career development). In

addition, the project examines whether those who have found work with the help of professionals and

those who have found work independently use differing strategies to maintain employment. Researchers ascertain the prevalence of various strategies in each group as well as their importance to participants in maintaining employment over time.
1-22 NIDRR Program Directory FY 2005 - Employment

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Virginia

Telework as an Accommodation for Employees with Disabilities:

Developing Prediction Models for Successful and Satisfying Careers

Virginia Commonwealth University

P.O. Box 980568

Richmond, VA 23284

mwest@mail1.vcu.edu

http://www.worksupport.com

Principal Investigator: Michael West, PhD

Public Contact: 804/828-1851; Fax: 804/828-2193

Project Number: H133G020158

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $149,998; FY 03 $149,996; FY 04 $149,998; FY 05 $0 (No-cost extension

through 3/31/2006)

Abstract: This three-year project develops research models to predict successful entry or reentry into

employment using telework options. The models include: (1) functional, demographic, and experiential

characteristics of participants; (2) telework options, such as telecenters, home-based work, and combinations of home- and office-based duties; (3) types of work performed, such as telephone or on-line

technical support, telemarketing, remote data entry, writing, reservations, etc.; (4) support and training

provided by the employer and public and private agencies; and (5) monetary factors such as earnings

and fringe benefits. “Success” is defined in terms of both sustained labor force involvement and

satisfaction with one’s job, earnings, benefits, and career path.
Health and Function

Maximizing health and function among people with disabilities is critical to the

achievement of NIDRR's mission and the associated higher-order goals of

employment and community participation. Functional ability reflects the complex

interaction between individuals and the environments in which they live.

Accordingly, NIDRR sponsors research to improve the health and function of

individuals with disabilities, as well as to understand and improve the system of

health care services delivery, including the delivery of medical rehabilitation services.

Contents

Rehabilitation Research and Training Centers (RRTCs) ............................................. 1

Disability and Rehabilitation Research Projects ......................................................... 10

Model Spinal Cord Injury Systems ............................................................................ 38

Field Initiated Projects (FIPs) ..................................................................................... 54

Small Business Innovative Research (SBIR), Phase I ............................................... 87

Small Business Innovative Research (SBIR), Phase II .............................................. 88

NIDRR Program Directory FY 2005 - Health and Function 2-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center in Neuromuscular

Diseases (RRTC/NMD)

University of California, Davis

Department of Physical Medicine and Rehabilitation (TB191)

School of Medicine

1 Shields Avenue

Davis, CA 95616

nmdinfo@ucdavis.edu

http://www.nmdinfo.net

Principal Investigator: Craig McDonald, MD

Public Contact: Sandy Walsh, Coordinator of Information Services 530/752-3447; Fax: 530/752-

3468

Project Number: H133B031118

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000

Abstract: The purpose of the Rehabilitation Research and Training Center in Neuromuscular Diseases

(RRTC/NMD) is to enhance the health, function, and quality of lives of persons with neuromuscular

diseases (NMD). The goals of this project are to: (1) develop a program for multicenter rehabilitation

research in NMD through the Cooperative International Neuromuscular Research Group (CINRG);

(2) conduct research that continues to address rehabilitation needs, particularly related to exercise,

nutrition, pain, secondary conditions, and the quality of life of individuals with neuromuscular diseases; (3) develop and evaluate new or emerging technologies and interventions that provide the

information needed to improve employment, community integration, and quality of life outcomes for

this population of individuals with disabilities; (4) develop and evaluate appropriate health promotion

and wellness programs that enhance the ability of individuals with neuromuscular disease to be physically active and participate in recreational activities; and (5) conduct a comprehensive program of

training, dissemination, utilization, and technical assistance activities that are well-anchored in the

research program and address the needs of stakeholders.
2-2 NIDRR Program Directory FY 2005 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Aging-Related Changes in Impairment for Persons Living with Physical

Disabilities

Los Amigos Research & Education Institute, Inc.

7601 East Imperial Highway

800 West Annex

Downey, CA 90242

lcarrothers@agingwithdisability.org

http://www.agingwithdisability.org

Principal Investigator: Bryan J. Kemp, PhD

Public Contact: LeeAnn Carrothers, PT, PhD, Training Director 562/401-7402; Fax: 562/401-7011

Project Number: H133B031002

Start Date: August 01, 2003

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $700,000; FY 04 $700,000; FY 05 $700,000

Abstract: This project is a combined effort of Rancho Los Amigos National Rehabilitation Center and

the University of California at Irvine, with other collaborators including the Center for Disability in the

Health Professions at Western University and two Rehabilitation Engineering Research Centers. This

project evolves from the fact that persons who have a disability are now living into middle age and late

life in ever-increasing numbers. However, many of these people appear to be experiencing premature

age-related changes in health and functioning. The project tests a model for improved understanding of

these problems and interventions to help alleviate them. Persons who are experiencing these kinds of

problems and their families are included in all center projects. The training, dissemination, and technical assistance activities include clinical training of current and future health providers, current and

future researchers, persons with disabilities, their families, and policy makers. Both traditional methods

of one-on-one and group training as well as technology-based distance training techniques are used to

reach national audiences and under-served populations.
NIDRR Program Directory FY 2005 - Health and Function 2-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

The Consortium for Children and Youth with Disabilities and Special

Health Care Needs.

Georgetown University

Center for Child and Human Development

3300 Whitehaven Street, NW

Suite 3300

Washington, DC 20007

nrrtc@georgetown.edu

http://www.georgetown.edu/research/gucchd/programs/consortium_for_ children.html

Principal Investigator: Phyllis Magrab, PhD

Public Contact: Toby Long, PhD, Training Director 202/687-8742 (V); 202/687-5503 (TTY); ; Fax:

202/687-8899

Project Number: H133B001200

Start Date: July 01, 2000

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 00 $699,956; FY 01 $699,947; FY 02 $699,926; FY 03 $699,981; FY 04

$699,893; FY 05 $0 (No-cost extension through 6/30/2006)

Abstract: The Consortium improves rehabilitation outcomes for children and youth with disabilities

and special health care needs by increasing the effectiveness of service system. Using an integrated,

multifaceted research approach and related training, dissemination, and technical assistance activities,

the Consortium targets five areas: (1) access issues in pediatric rehabilitation, (2) characteristics of

health plans and access to services, (3) promising practices in transition from pediatric to adult health

care, (4) effective telehealth strategies for interdisciplinary service delivery in remote areas, and (5)

training issues in Assistive Technology. Building on this research program, the consortium utilizes a

variety of strategies to provide training and technical assistance to the target audience of families,

consumers, providers, researchers, policymakers, and managed care organizations to improve rehabilitative services to this population in order to enhance their quality of life and that of their families. The

RRTC is run buy the Georgetown University’s Center for Child and Human Development in collaboration with Brandeis University’s Heller School, the University of Florida’s Institute of Child Health

Policy, and Family Voices.
2-4 NIDRR Program Directory FY 2005 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Access to Rehabilitation and Empowerment Opportunities for Minority

Persons with Disabilities

Howard University

1840 7th Street, NW, 2nd floor

Washington, DC 20001

mross@howard.edu

http://www.law.howard.edu/HURTC/HURTC.html

Principal Investigator: Dr. M. Gerlene Ross.

Public Contact: 202/865-8140; Fax: 202/806-8148

Project Number: H133B000903

Start Date: October 01, 2000

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $600,000; FY 01 $600,000; FY 02 $600,000; FY 03 $600,000; FY 04

$600,000; FY 05 $0 (No-cost extension through 9/30/2006)

Other Funding: FY 01 $39,375 (NIDRR)

Abstract: The Howard University Research and Training Center for Access to Rehabilitation and

Empowerment Opportunity (HURTC) is implementing a RRTC on Access to Rehabilitation and

Empowerment Opportunities for Minority Persons with Disabilities to help them achieve self-determination, economic independence, and full participation in American life. The program of the Center is

designed to attain the following objectives: identify methodological problems determining the rehabilitation needs of persons with disabilities from minority backgrounds (including sub-populations within

these groups) and propose strategies to address these methodological problems; based on research

findings, identify implications for rehabilitation research, training, policy development, and services;

assess the outcomes of rehabilitation for persons with disabilities from minority backgrounds as measured by two or more variables (such as functional abilities, wellness, employment, health/wellness,

and psychosocial status); analyze the affects of minority status on rehabilitation outcomes; and identify,

develop, and evaluate rehabilitation methodologies, models, and interventions for specific minority

groups. The HURTC collaborates with the Center for Disease Control, the Center for Minority Health,

and a variety of stakeholders including consumers with disabilities, state agencies, continuing education programs, and community-based organizations.
NIDRR Program Directory FY 2005 - Health and Function 2-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

RRTC on Technology Promoting Integration for Stroke Survivors:

Overcoming Social Barriers

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611

ejr@northwestern.edu

http://www.rrtc-stroke.org/

Principal Investigator: Elliot J. Roth, MD 312/238-4637

Public Contact: Linda Lovell, Project Coordinator 312/238-6197; Fax: 312/238-6998

Project Number: H133B031127

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000

Abstract: This project develops and evaluates a sequence of robotic training and assistive devices that

are designed with the idea of promoting efficient function in the workplace or at home, and with the

further intent that they form a basis for the development of appropriate technologies to allow people

with disabilities ready access to existing facilities in the community. At each stage the project engages

engineering students as a means to provide intensive effort for development of novel designs, but also

to provide valuable opportunities for training students in the themes related to recovery of function and

community integration of people with disabilities. Other projects at this center include: the use of

emotionally expressive and narrative writing to facilitate coping and adaptation after stroke; computerized training for conversational scripts that facilitate access to the community and work force; and a

consumer-directed, dynamic assessment methodology for evaluating community living and work

participation environments and technologies for use by people who have had a stroke. In addition to

these projects, the RRTC develops and evaluates a comprehensive plan for training directed to stroke

survivors and their families, students, researchers, clinicians, and service providers. These approaches

are implemented through a variety of mechanisms, including continuing education courses, web-based

presentations, and intensive training in our research facilities.
2-6 NIDRR Program Directory FY 2005 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Maryland

Rehabilitation Research and Training Center on Spinal Cord Injury:

Promoting Health and Preventing Complications through Exercise

National Rehabilitation Hospital/MedStar Research Institute

102 Irving Street, NW

Washington, DC 20010

melinda.t.neri@medstar.net

http://www.sci-health.org

Principal Investigator: Suzanne L. Groah, MD 202/877-1196

Public Contact: Mel Neri, Project Coordinator, National Rehabilitation Hospital Center for Health

and Disability Research, 102 Irving Street, NW, Washington, DC 20010-2949 202/877-1038;

Fax: 202/726-7521

Project Number: H133B031114

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000

Abstract: This project systematically and comprehensively addresses the role and impact of physical

activity in the prevention of secondary conditions in people with spinal cord injury (SCI). Initially, the

project establishes critical, yet-undefined physiological responses to exercise in SCI and comprehensively examines cardiovascular disease risk in individuals with SCI applying accepted guidelines used

in the able-bodied population. The project develops exercise formats specifically designed according to

severity of SCI and chronicity of SCI to address the prevention of and knowledge regarding osteoporosis and other secondary conditions. In addition, the project determines whether regular exercise

is related to fewer secondary conditions. These research findings feed into four training activities that

include a peer mentoring program for newly injured people with SCI, a consumer-driven education

curriculum for physical therapy and medical students, a state-of-science and training conference, and

the development of a virtual resource network on exercise and prevention. The RRTC is a collaborative effort of clinical and disability researchers, SCI consumer organizations, and independent living

advocates.
NIDRR Program Directory FY 2005 - Health and Function 2-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Missouri

Missouri Arthritis Rehabilitation Research and Training Center

(MARRTC)

University of Missouri

Physical Medicine and Rehabilitation

One Hospital Drive, DC330.00

Columbia, MO 65212

holtmeyerk@health.missouri.edu

http://www.marrtc.org

Principal Investigator: Jerry C. Parker, PhD

Public Contact: Kim Holtmeyer 573/884-1499; Fax: 573/884-3020

Project Number: H133B031120

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000

Abstract: The purpose of the Missouri Arthritis Rehabilitation Research and Training Center

(MARRTC) is to provide leadership at the national level in support of three key objectives: to reduce

pain and disability, to improve physical fitness and quality of life, and to promote independent living

and community integration for persons with arthritis of all ages in the United States. State-of-thescience rehabilitation research addresses the needs of persons with arthritis in the following areas: (1)

home and community-based self-management programs, (2) benefits of exercise and physical fitness,

and (3) technologies available to the broad populations of persons with arthritis in the environments

where they live, learn, work, and play. The MARRTC conducts training and capacity-building programs for critical stakeholders within the arthritis disability arena, including consumers, family members, service providers, and policy makers. Additionally, the MARRTC provides technical assistance

for persons with arthritis and other stakeholders in order to promote utilization of arthritis-related,

disability research. The MARRTC also provides widespread dissemination of informational materials

to persons with disabilities, their representatives, service providers, and other target audiences (e.g.,

editors and reporters).
2-8 NIDRR Program Directory FY 2005 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center on Health and Wellness in

Long Term Disability

Oregon Health and Science University

Oregon Institute on Disability and Development

Child Development and Rehabilitation Center

707 Southwest Gaines

P.O. Box 574

Portland, OR 97207-0574

rrtc@ohsu.edu

http://www.healthwellness.org

Principal Investigator: Gloria Krahn, PhD, MPH 503/494-8364

Public Contact: Laura Hammond, Center Coordinator 503/494-3882; Fax: 503/494-6868

Project Number: H133B040034

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 04 $700,000; FY 05 $700,000

Abstract: The vision of the RRTC is to contribute to the reduction of health disparities for person with

disabilities through an integrated program of research, training, technical assistance, and dissemination.

The Center has three inter-related strands of work to address its three intended outcomes/goals: (1)

identify strategies to overcome barriers that impede access to routine healthcare for individuals with

disabilities; (2) identify interventions in areas such as exercise, nutrition, pain management, or complementary and alternative therapies that promote health and wellness and minimize the occurrence of

secondary conditions for persons with disabilities; and (3) develop improved status measurement

tool(s) to assess health and well-being of individuals with disabilities regardless of functional ability. In

order to achieve these outcomes, the RRTC conducts a coordinated program of research and training

activities using a logic model framework. RRTC projects summarize and validate existing research

findings on barriers to health care access as well as rigorously test and compare new strategies to

overcoming identified barriers. The RRTC also examines and evaluates the practices of exemplary

generic and specialized health promotion programs for people with disabilities in order to create an

evidence-based set of evaluation and planning criteria. In addition, the RRTC organizes and uses

panels to assess current health status measurement tools and develops or refines measures to more

accurately reflect the health and well-being of people living with disabilities. Throughout these activities the RRTC disseminates informational materials and provide technical assistance to individuals with

disabilities, their representatives, providers, and other interested parties.
NIDRR Program Directory FY 2005 - Health and Function 2-9

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Washington

Multiple Sclerosis Rehabilitation Research and Training Center

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98185

msrrtc@u.washington.edu

http://www.msrrtc.washington.edu

Principal Investigator: George H. Kraft, MD 206/543-7272

Public Contact: 888/634-6778; 206/221-5302; Fax: 206/685-3244

Project Number: H133B031129

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000

Abstract: This center conducts rehabilitation research that: (1) Develops new interventions and

practices in the areas of disease suppression, strength enhancement, preserving employment, depression management, and pain control; (2) collects data from an extensive survey and explores complex

interactions among multiple variables, models factors that predict differing levels of participation by

people with MS, and proposes points of intervention that modify changes in function; and (3) facilitates enhanced participation through training, technical assistance, and dissemination through professional meetings, publications, and a State-of-the-Science conference. In addition, a web-based

knowledgebase provides technical assistance to individuals with MS and healthcare providers with

respect to caregiver issues, financial and insurance planning, self-sufficiency and coping, and assistive

technology.
2-10 NIDRR Program Directory FY 2005 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Alabama

UAB TBI Model System

University of Alabama/Birmingham

Spain Rehabilitation Center; Physical Medicine and Rehabilitation

619 - 19th Street South, SRC529

Birmingham, AL 35249-7330

novack@uab.edu

http://www.uab.edu/tbi

Principal Investigator: Thomas A. Novack, PhD

Public Contact: Pamela K. Mott 205/934-3283

Project Number: H133A020509

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: The University of Alabama at Birmingham (UAB) is maintaining and further developing a

Traumatic Brain Injury Model System (TBIMS) that improves rehabilitation services and outcomes for

persons with TBI. This project provides a multidisciplinary system of rehabilitation care specifically

designed to meet the needs of individuals with TBI, and, as demonstrated over the past four years as a

TBIMS, adequately enrolls subjects to complete research projects successfully. In addition to contributing data to the TBI National Database, the UAB TBIMS conducts two research projects: (1) an

examination of the use of a serotonin agonist medication (sertraline) to lessen the incidence and severity of depression during the first year of recovery following TBI; (2) a study of the impact of a training

program in problems solving for caregivers.
NIDRR Program Directory FY 2005 - Health and Function 2-11

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Northern California Traumatic Brain Injury Model System of Care

Santa Clara Valley Medical Center (SCVMC)

Rehabilitation Research Center

751 South Bascom Avenue

San Jose, CA 95128

jerry.wright@hhs.co.scl.ca.us

http://www.tbi-sci.org

Principal Investigator: Tamara Bushnik, PhD

Public Contact: 408/793-6433; Fax: 408/793-6434

Project Number: H133A020524

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $364,038; FY 03 $364,588; FY 04 $364,745; FY 05 $364,956

Abstract: This project conducts two studies to better characterize the type and impact of fatigue on the

TBI population: (1) a cross-sectional study of people up to ten years post-TBI and (2) a longitudinal

study that focuses on the evolution of fatigue over the first two years post-injury. Both studies utilize

standardized measurements of fatigue, as well as those for depression/affective disorders, sleep disturbance, activity scales, and measurements of hormone levels reflective of the health of the neuroendocrine system. Two additional studies characterize the impact of late posttraumatic seizures on recovery:

(1) a study utilizing data already in the TBIMS National Database that compares the functional, vocational, and medical complication outcomes of those with and without late posttraumatic seizures; (2) a

study in collaboration with Denver Hospital Medical Center that interviews individuals at both sites

who participated in a previously funded NIDRR grant on seizure risk identification. This study further

evaluates barriers to the environment, transportation, and challenges in control of their seizures.
2-12 NIDRR Program Directory FY 2005 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

UCHSC Burn Model System Data Coordination Center (BMS/DCC)

University of Colorado Health Sciences Center

School of Medicine

Department of Preventive Medicine and Biometrics

4200 East Ninth Avenue, Box B119

Denver, CO 80262

rebecca.sloan@uchsc.edu

http://bms-dcc.uchsc.edu

Principal Investigator: Dennis C. Lezotte, PhD 303/315-6873

Public Contact: Rebecca Sloan, Project Coordinator 303/315-0320; Fax: 303/315-3183

Project Number: H133A020402

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $249,997; FY 03 $249,995; FY 04 $249,997; FY 05 $249,999

Abstract: The BMS/DCC establishes a data management and analytical support facility for Burn

Model Systems clinical and outcomes research projects. Objectives include: (1) to serve the clinical,

research, and public communities to which it is responsible; (2) to serve the needs of good scientific

procedure in multi-institutional outcomes research; and (3) to support the needs for patient safety and

data confidentiality as required by Federal regulations when conducting collaborative clinical studies.

The BMS Project is structured as a set of interacting, observational, randomized, and quasi-experimental clinical studies run at different centers that share the common purpose of acquiring and disseminating knowledge about burn injury care and rehabilitation. The project offers support in four important

areas: project management, data management, analytical support, and dissemination. Support is provided in developing appropriate integrated systems to affect national data collection, project management, data coordination, technical support, collaborative clinical projects, scientific conduct, scientific

publication, and effective dissemination. The UCHSC BMS/DCC continues to accumulate and integrate a central repository of data from the Model Systems to enhance their abilities to make sentinel

statements and change the way burn injury rehabilitation is done. While the main function of the DCC

is to integrate and manage these data, it also needs to be responsive to the technical and analytical

needs of these individual clinical centers. In addition the DCC provides and coordinates statistical

support among the clinical and statistical groups from each Burn Center and is prepared to expand this

support, adding several new protocols and/or clinical studies where appropriate.
NIDRR Program Directory FY 2005 - Health and Function 2-13

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

Lifetime Outcomes and Needs: Refining the Understanding of Aging

with Spinal Cord Injury

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

susie@craighospital.org

http://www.craighospital.org

Principal Investigator: Daniel P. Lammertse, MD; Susan B. Charlifue, PhD 303/789-8220

Public Contact: Susan B. Charlifue, PhD 303/789-8306; Fax: 303/789-8441

Project Number: H133A011108

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 01 $350,000; FY 02 $350,000; FY 03 $350,000; FY 04 $350,000; FY 05

$350,000

Abstract: This project explores the incidence and prevalence of several health and psychosocial

conditions that accompany living many years with SCI. Also studied in this comprehensive, longitudinal, multicenter effort are the services available to individuals with SCI as they attempt to address these

conditions throughout their lives. The study expands the longitudinal database, addressing emerging

issues of aging with SCI in greater detail, and expands efforts to share findings with a variety of

constituents. The eight areas of focus include: (1) secondary conditions from five to 25 years postinjury, (2) new analytic techniques with longitudinal datasets, (3) chronic pain, (4) access to and

satisfaction with health services, (5) personal assistance services, (6) spirituality and its effects on

health outcomes and quality of life, (7) the role of perceived stress and self-reported problems on the

presence or absence of secondary conditions and in relation to one’s overall well-being, and (8) trends

in quality of life and health. This longitudinal study builds on two previous data collection points. It

includes a broad, comprehensive examination of secondary conditions, both physical and psychosocial, and several new areas of inquiry investigated in-depth.
2-14 NIDRR Program Directory FY 2005 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

The Rocky Mountain Regional Brain Injury System (RMRBIS)

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

charrison-felix@craighospital.org

http://www.craighospital.org

Principal Investigator: Gale G. Whiteneck, PhD 303/789-8204

Public Contact: Cynthia Harrison-Felix, PhD 303/789-8565; Fax: 303/789-8441

Project Number: H133A020510

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: The Rocky Mountain Regional Brain Injury System (RMRBIS) conducts three research

projects: Study 1 examines the effects of Modafinil on fatigue and excessive sleepiness after TBI.

Study 2 assesses the effectiveness of a group therapy intervention for social pragmatic communication.

Study 3 uses the unique database assets of Craig Hospital and investigates the environmental and

clinical factors that influence outcome over a 40-year time frame to understand the process of living

and aging with a TBI. In addition to clinical research and service, Craig Hospital, as the RMRBIS,

documents an outstanding record of dissemination, for all customers including clinical consumers,

community agencies and advocacy groups, other clinical service centers and systems, and professionals engaged in the treatment of persons with TBI.
NIDRR Program Directory FY 2005 - Health and Function 2-15

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Florida

Pharmacological Management of Dyslipidemia and Cardiovascular

Disease in Persons with Chronic Cervical SCI: A Multicenter

Collaborative Trial

University of Miami

School of Medicine

1095 Northwest 14th Terrace, R48

Miami, FL 33136

msnash@miami.edu

http://www.miamiproject.miami.edu

Principal Investigator: Mark S. Nash, PhD 305/243-3628

Public Contact: Maria Amadore, Directory of Education, Miami Project to Cure Paralysis 305/243-

7108

Project Number: H133A011115

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $344,023; FY 02 $340,953; FY 03 $271,952; FY 04 $0 (No-cost extension

through 9/30/2005); FY 05 $0 (No-cost extension through 9/30/2006)

Abstract: This project researches strategies that reduce cardiovascular disease risks after onset of

tetraplegia by increasing high-density lipoprotein cholesterol (HDL-C) levels. The research examines

the ability of a pharmaceutical therapy to improve the lipid profiles and forestall cardiovascular disease

progression in persons with tetraplegia. Previous research on persons without SCI has shown extended-release niacin effective for elevating HDL-C, lowering total cholesterol, lowering low-density

lipoprotein cholesterol (LDL-C), lowering triglycerides, slowing cardiovascular disease progression,

and reducing cardiovascular morbidity and mortality. The ability of this drug to improve lipid profiles

has never been examined in persons with tetraplegia, although drug benefits similar to those reported in

persons without SCI would be of great health benefit to those with tetraplegia.
2-16 NIDRR Program Directory FY 2005 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Health Services Research DRRP on Medical Rehabilitation

Northwestern University

Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611-2654

a-heinemann@northwestern.edu

http://www.ric.org/research/outcomes/drrp.php

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-2383

Project Number: H133A030807

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 03 $300,000; FY 04 $300,000; FY 05 $300,000

Abstract: This research addresses the need to improve the delivery of health services to persons with

disabilities by (1) evaluating the impact of Medicare’s inpatient rehabilitation facilities’ (IRF) prospective payment system (PPS) on access to rehabilitation services in terms of settings, services, and length

of stay; and (2) identifying the impact of comorbidities on how patients are classified and reimbursed

under the new IRF PPS. Medicare’s new PPS for IRF may limit effective access to care because

facilities will take fewer risks with patients deemed to be “high cost outliners,” hire more “therapy

extenders” rather than licensed professionals, and discharge patients at a higher rate to nursing facilities

rather than to community settings. The four specific aims of the research are to: (1) examine changes in

the organization of medical rehabilitation services in response to prospective payment; (2) examine

changes in patient access to medical rehabilitation settings and services resulting from organizational

responses to the change in reimbursement; (3) examine the impact of PPS-related changes in service

delivery on patient outcomes; and (4) identify the impact of comorbidities on classification and reimbursement in medical rehabilitation PPS.
NIDRR Program Directory FY 2005 - Health and Function 2-17

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Maryland

Johns Hopkins University Burn Injury Rehabilitation Model System

Baltimore Regional Burn Center

Johns Hopkins Bayview Medical Center

4940 Eastern Avenue

Baltimore, MD 21224

jfauerba@jhmi.edu

http://www.jhbmc.jhu.edu/brbc/birms

Principal Investigator: James A. Fauerbach, PhD 410/550-0894

Public Contact: Bernadette Guthrie 410/550-5298; Fax: 410/550-8161

Project Number: H133A020101

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $298,928; FY 03 $299,995; FY 04 $299,753; FY 05 $298,311

Abstract: This project tests interventions targeting three common postburn secondary complications

affecting health and function: generalized deconditioning, muscle atrophy, and acute stress disorder.

Testing the effectiveness of these interventions holds promise for improving the health and function of

burn survivors as well as enhancing their options for workplace and community reintegration. The

JHU-BIRMS includes several projects: (1) testing the efficacy of its augmented exercise program in

rehabilitating people with generalized deconditioning, (2) testing the efficacy of enhanced cognitivebehavioral therapy in treating individuals with acute stress disorder and preventing the development of

chronic posttraumatic stress disorder, (3) developing a new measure that quantifies the degree of social

stigmatization experienced by burn survivors and its impact on emotional adjustment and integration

into the workplace and the community (this project involves the Phoenix Society, the largest foundation supporting burn survivors and their significant others), (4) a collaborative effort with the University of Washington on a workplace integration study identifying and quantifying those factors interfering with early and complete return to work, and (5) a collaborative study on health and function with

the University of Texas.
2-18 NIDRR Program Directory FY 2005 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Maryland

Medicaid Quality Indicators for Individuals with Disabilities

National Rehabilitation Hospital/MRI

102 Irving Street NW

Washington, DC 20010

susan.e.palsbo@medstar.net

http://www.nrhchdr.org

Principal Investigator: Susan E. Palsbo, PhD

Public Contact: 202/466-1904; Fax: 202/466-1911

Project Number: H133A030804

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 03 $300,000; FY 04 $299,999; FY 05 $299,999

Abstract: This project develops and validates health service quality indicators for people with disabilities. The target population to be served is people with disabilities enrolled in managed Medicaid

programs. The goal is to develop and field test quality measures for people with disabilities in managed

care organizations. The specific aims are: (1) Case Identification: Improve the computer algorithm for

Medicaid plans to identify beneficiaries who have disabilities. (2) Plan-reported indicators: Select a

subset of existing HEDIS Medicaid measures that are appropriate and statistically meaningful for

indicating the quality of care for the people identified in Aim#1. (3) Consumer-reported indicators:

Assess the content validity of the Axis-CAHPS survey. (4) Develop comparative reporting tools of the

quality of care between and within health plans. This is a combined qualitative and quantitative study

with three interrelated segments. (1) Extend previous research on using routine health claims data to

identify beneficiaries who are at risk of needing modified help to access their Medicaid benefits and

services. (2) Review and refine the two most widely used Medicaid quality indicator tools, CAHPS

and HEDIS; and extend work on refining the CAHPS instrument for people with physical disabilities;

and (3) Explore how people with disabilities, payers, and providers can use the indicators to improve

practice and report outcomes using comparative reporting tools.
NIDRR Program Directory FY 2005 - Health and Function 2-19

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

The Spaulding/Partners TBI Model System at Harvard Medical School

Spaulding Rehabilitation Hospital

125 Nashua Street

Boston, MA 02114

toneilpirozzi@partners.org

http://spauldingrehab.org/body.cfm?id=185

Principal Investigator: Mel B. Glenn, MD 617/573-2625

Public Contact: Therese O’Neil-Pirozzi, ScD 617/573-2456; Fax:

Project Number: H133A020513

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: The Spaulding TBI Model System (TBIMS) provides a comprehensive spectrum of care for

people with TBI through the collaborative efforts of three hospitals that are part of Partners Health

Care System, Inc., and four organizations that operate a variety of postacute rehabilitation programs.

Research at the center includes development of functional neuroimaging as a tool to guide cognitive

rehabilitation treatment for people with TBI, and use of functional magnetic resonance imaging

(fMRI), with both a cross-sectional and longitudinal component. The cross-sectional component

assesses regional brain activation during the memorization of word lists, both under undirected (spontaneous) conditions and following training and cueing to use a categorization strategy. The longitudinal

component studies the ability of the fMRI findings to predict outcome among people with TBI who

participate in community integration program with a cognitive rehabilitation focus.
2-20 NIDRR Program Directory FY 2005 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Michigan

Southeastern Michigan Traumatic Brain Injury System (SEMTBIS)

Wayne State University and Rehabilitation Institute of Michigan

Department of Physical Medicine and Rehabilitation

261 Mack Boulevard

Detroit, MI 48201

rhanks@dmc.org

http://www.semtbis.org

Principal Investigator: Robin A. Hanks, PhD 313/745-9763

Public Contact: Deborah Wood, 313/745-1188; Fax: 313/966-7502

Project Number: H133A020515

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $364,996; FY 03 $364,995; FY 04 $364,997; FY 05 $364,992

Abstract: The Southeastern Michigan Traumatic Brain Injury System (SEMTBIS) program conducts

projects developed with the help of SEMTBIS consumers, as well as other members of the Detroit

community. Three studies evaluate: (1) a peer-mentoring intervention, (2) a dynamic system of survivor and significant-other well-being, and (3) resumption of driving after brain injury. Study 1 is a

randomized controlled trial of a peer-mentoring program for both survivors and their caregivers. Study

2 studies 250 community-dwelling adults with TBI and their caregivers/significant others, exploring

the relationship of survivor-caregiver situations with survivor distress and family dysfunction. It also

studies whether or not social support acts as a moderating influence upon the well-being of persons

with TBI. Study 3 examines correlates of driving after brain injury: barriers, fitness to drive, and

community rapport. Participatory action is a central component of project implementation, evaluation,

and dissemination. SEMTBIS participates in clinical and systems analysis studies of the TBI Model

Systems by collecting and contributing data to the uniform, standardized national database.
NIDRR Program Directory FY 2005 - Health and Function 2-21

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projectso:

Minnesota

Mayo Clinic Traumatic Brain Injury Model System

Mayo Medical Center

200 First Street

Rochester, MN 55905

malec.james@mayo.edu

http://www.mayo.edu/model-system

Principal Investigator: James F. Malec, PhD

Public Contact: Anne Moessner 507/255-3116; Fax: 507/255-7696

Project Number: H133A020507

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 02 $364,891; FY 03 $364,738; FY 04 $363,786; FY 05 $364,993

Abstract: This Traumatic Brain Injury Model System (TBIMS) focuses on three local research

projects: (1) decision-making and outcomes of inpatient and outpatient rehabilitation pathways, (2)

very-long-term (5-15+ years postinjury) process and outcome for people with TBI, identified through

the Rochester Epidemiology Project, and (3) telehealth-based (Internet) cognitive rehabilitation.

Telehealth is a potentially important innovation in this system’s region, where distance limits access to

medical and rehabilitation services and many consumers have limited access to health care, insurance,

employment, and viable political representation. In addition to professional publications and presentations, continuing dissemination efforts include the Mayo Clinic TBIMS website, the TBI Hotline, the

Messenger newsletter, contributions to the COMBI web site and COMBI and TBIMS newsletters, and

regular participation by Mayo Clinic TBIMS staff at all annual state brain injury association meetings

in the extended five-state geographical region. During the next five years, the project plans to develop

an advocacy training program to help people with TBI and their families and significant others in the

region learn self-advocacy skills. Members of the Mayo TBI Regional Advisory Council were

proactively involved in developing this project.
2-22 NIDRR Program Directory FY 2005 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Mississippi

Traumatic Brain Injury Model System of Mississippi (TBIMSM)

Methodist Rehabilitation Center

Brain Injury Program

1350 East Woodrow Wilson Center

Jackson, MS 39216

marks@mmrcrehab.org

http://www.mmrcrehab.org

Principal Investigator: Mark Sherer, PhD, ABPP-Cn

Public Contact: 601/364-3448; Fax: 601/364-3558

Project Number: H133A020514

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: The TBI Model System of Mississippi (TBIMSM) is a collaborative project of Methodist

Rehabilitation Center and the University of Mississippi Medical Center. This project involves three

studies. The first study investigates two medications in a parallel group, double blind, placebo controlled, randomized assignment design. The drugs under investigation have differing neurotransmitter

effects, although each drug has been reported to have therapeutic benefit. The target population for this

study is persons with TBI who are in a state of posttraumatic confusional state (PCS). This is considered a state-of-the-art approach to PCS given the severe lack of controlled research to measure medication usage in PCS. The second study develops and conducts a trial of an intervention to improve the

therapeutic alliances between persons with TBI and family members and professional staff serving

persons with TBI in a post-acute brain injury neurorehabilitation program (PABIR). The third research

project investigates the use of transcranial magnetic stimulation (TMS) to improve the characterization

of motor disorders after TBI. Current research suggests that improved use and better understanding of

TMS technology will lead to new intervention trials to improve motor function after TBI.
NIDRR Program Directory FY 2005 - Health and Function 2-23

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Jersey

JFK-Johnson Rehabilitation Institute TBI Model System

JFK Johnson Rehabilitation Institute

2048 Oak Tree Road

Edison, NJ 08820

kcicerone@solarishs.org

http://www.njrehab.org/tbims

Principal Investigator: Keith D. Cicerone, PhD

Public Contact: 732/906-2640; Fax: 732/906-9241

Project Number: H133A020518

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: This project implements and evaluates innovative rehabilitation interventions that address

the spectrum of severity and needs of persons with TBI. The first research study investigates the

relationship between neurobehavioral (i.e., standardized rating scale) and neurophysiologic (i.e.,

functional MRI data) indices of brain function in persons with traumatic minimally conscious state

(MCS). The second study addresses current clinical and methodological concerns over the effectiveness of cognitive rehabilitation on cognitive functioning, community integration and social participation, return to school and work, and quality of life after traumatic brain injury. The third study uses

qualitative inquiry to describe the quality of life after TBI from the perspective of persons at various

stages after their injuries. These findings are triangulated with quantitative indices of community

integration and satisfaction with functioning, which should provide a richer and more authentic understanding of what it takes to live a fulfilling life after traumatic brain injury.
2-24 NIDRR Program Directory FY 2005 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Jersey

A Multicenter Prospective Randomized Controlled Trial of the

Effectiveness of Amantadine Hydrochloride in Promoting Recovery of

Function Following Severe Traumatic Brain Injury

JFK Johnson Rehabilitation Institute

Center for Head Injuries

2048 Oak Tree Road

Edison, NJ 08820

http://www.njrehab.org/tbims/index.asp

Principal Investigator: Joseph T. Giacino, PhD

Public Contact: 732/205-1461; Fax: 732/632-1584

Project Number: H133A031713

Start Date: January 01, 2004

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 03 $599,862; FY 04 $599,994; FY 05 $599,994

Abstract: In this study, eight facilities (three of which are also Traumatic Brain Injury (TBI) Model

Systems), join with a Data Coordinating Center at Columbia University, to conduct a prospective

double blind randomized controlled trial of amantadine. More than 180 patients who remain in vegetative state (VS) or minimally conscious state (MCS) 4-16 weeks post-TBI are randomized in a stratified

fashion to 4 weeks of amantadine (200-400 mg/day) vs. placebo, followed by a 2-week washout

period. The Disability Rating Scale is the primary dependent variable with the Coma Recovery ScaleRevised serving as a supplementary measure. The project also explores whether treatment response

differs by time post-injury and by diagnosis (i.e., VS or MCS) at treatment onset, and whether specific

outcomes of importance to caregivers are achieved more often in the amantadine group.
NIDRR Program Directory FY 2005 - Health and Function 2-25

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

New York Traumatic Brain Injury Model System (NYTBIMS)

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

Research and Training Center

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

http://www.mssm.edu/nytbims

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372; Fax: 212/348-5901

Project Number: H133A020501

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: This project advances the understanding of TBI and its consequences and improves rehabilitation outcomes. The research projects focus on depression and fatigue, impairments that limit

participation in community and vocational activities: Treatment of Post-TBI Depression is a randomized clinical trial to examine the efficacy of sertraline (Zoloft) in the treatment of depression and

anxiety after traumatic brain injury. Study of Post-TBI Fatigue and its Treatment investigates the

components, consequences, and correlates of post-TBI fatigue, and in a randomized clinical trial,

evaluates the benefits of modafinil (Provigil) to treat fatigue in individuals with TBI.
2-26 NIDRR Program Directory FY 2005 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

North Carolina

Carolinas Traumatic Brain Injury Rehabilitation and Research System

Charlotte Mecklenburg Hospital Authority

Charlotte Institute of Rehabilitation

1100 Blythe Boulevard

Charlotte, NC 28203

fhammond@carolinas.org

http://www.carolinas.org

Principal Investigator: Flora M. Hammond, MD

Public Contact: 704/355-4330; Fax: 704/355-0709

Project Number: H133A020522

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: This project investigates posttraumatic irritability, its relationship to the caregiver as a

component of the environment, the reaction to amantadine hydrochloride, and the nature of the problem as experienced by those in the community. The mission of CTBIRRS is to improve care and

outcomes for survivors of TBI through medical treatments, services, research, and dissemination to

expand and enhance services throughout their lifetime. The system begins with prevention and emergency medical services and extends through intensive care, acute care, and comprehensive medical

rehabilitation to long-term follow-up, community reintegration, and vocational rehabilitation.
NIDRR Program Directory FY 2005 - Health and Function 2-27

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Ohio

Ohio Regional TBI Model System

Ohio Valley Center for Brain Injury Prevention and Rehabilitation

Department of Physical Medicine and Rehabilitation

Ohio State University

Dodd Hall; 480 West Ninth Avenue

Columbus, OH 43210

lamb-hart.1@osu.edu

http://www.ohiovalley.org

Principal Investigator: John D. Corrigan, PhD 614/293-3830

Public Contact: Gary Lamb-Hart 614/293-3802; Fax: 614/293-8886

Project Number: H133A020503

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $365,000; FY 03 $364,995; FY 04 $364,970; FY 05 $364,885

Abstract: This model system includes two local research projects on substance abuse and persons

with TBI. Study 1 is a randomized clinical trial testing interventions to promote retention in substance

abuse treatment. This study employs intervention strategies found effective for clients with TBI when

first engaging with a treatment program. Study 2 tests the concurrent validity of an instrument that

documents the extent of a person’s prior history of TBI objectively. This instrument is intended for

research on TBI as a mediating factor in substance abuse treatment. This model system utilizes innovative community integration programs: Team Brain Injury (follow-up case management), the TBI

Network (substance abuse treatment), and Community Capacity Building (education and advocacy

operated in conjunction with the Brain Injury Association of Ohio).
2-28 NIDRR Program Directory FY 2005 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Pennsylvania

The Moss Traumatic Brain Injury Model System

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

1200 West Tabor Road, Korman Suite 213

Philadelphia, PA 19141

thart@einstein.edu

http://www.einstein.edu/facilities/mossrehab/index.html

Principal Investigator: Tessa Hart, PhD

Public Contact: 215/456-6544; Fax: 215/456-5926

Project Number: H133A020505

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: This project provides cutting-edge care for persons with TBI, conducts research on treatment of TBI in three key areas, and disseminates new knowledge to consumer and professional audiences, using an extensive collaborative network. Seven Trauma Centers and two nationally renowned

rehabilitation facilities, MossRehab and Magee Rehabilitation, collaborate in the clinical component of

the Moss Traumatic Brain Injury Model System. The Moss Rehabilitation Research Institute administers the research component, which includes collaborative longitudinal data collection, as well as three

local research projects on: (1) the use of assistive technology for cognitive and behavioral disabilities,

(2) validation of an observational rating scale of attention dysfunction in a psychostimulant treatment

trial, and (3) use of botulinum toxin for treating severe spasticity caused by TBI. The Moss TBIMS

emphasizes consumer involvement in clinical program improvement, research design, and dissemination via collaboration with the Brain Injury Association of Pennsylvania and other consumers.
NIDRR Program Directory FY 2005 - Health and Function 2-29

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Pennsylvania

Collaboration of Upper Limb Pain in Spinal Cord Injury

University of Pittsburgh

7180 Highland Drive

Pittsburgh, PA 15206

boninger@pitt.edu

http://www.herlpitt.org

Principal Investigator: Michael L. Boninger, MD

Public Contact: Peter Hunt 412/365-4850; Fax: 412/365-4858

Project Number: H133A011107

Start Date: December 01, 2001

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $349,998; FY 02 $349,950; FY 03 $349,954; FY 04 $349,936; FY 05

$349,947

Abstract: This collaborative studies project provides an opportunity to gain further insight into the

cause and prevention of upper limb repetitive strain injuries in SCI. For the approximately 200,000

individuals with SCI, upper limb pain and injury is very common; some studies find prevalence rates

above 70 percent. Prolonged wheelchair use and transfers have long been thought to cause these

repetitive strain injuries. The consequences of upper limb pain are so significant that some researchers

have suggested that damage to the upper arm may be functionally and economically equivalent to a

spinal cord injury of higher neurological level. This collaboration includes the University of Pittsburgh

Medical Center Spinal Cord Injury project, the Northern New Jersey Spinal Cord Injury System

(NNJSCIS), and the Northwest Regional Spinal Cord Injury System (NWRSCIS).
2-30 NIDRR Program Directory FY 2005 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Pennsylvania

University of Pittsburgh Brain Injury Model System (UPBI)

University of Pittsburgh

School of Medicine

3471 Fifth Avenue

Suite 201 Kaufmann Building

Pittsburgh, PA 15213

zafonterd@msx.upmc.edu

http://www.umc.pitt.edu/tbi/

Principal Investigator: Ross D. Zafonte, DO

Public Contact: 412/648-6979; Fax: 412/692-4410

Project Number: H133A020502

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 02 $364,484; FY 03 $360,375; FY 04 $362,875; FY 05 $362,875

Abstract: The research focus of the University of Pittsburgh Brain Injury Model System is on innovation in rehabilitation technology for persons with TBI. The project evaluates the impact of selected

innovations in technology on service delivery, functional outcome, and as a therapeutic intervention. It

addresses the shortcoming in wheelchair design for persons with brain injury by evaluating a unique,

personalized powered mobility system. Collaboration with the Robotics Institute at Carnegie Mellon

University allows researchers to perform a randomized trial evaluating the efficacy of virtual reality

and robotics for persons with TBI. Finally, the project uses intelligent navigation technology to implement and evaluate a web-based virtual case manager support structure for persons with TBI and their

families.
NIDRR Program Directory FY 2005 - Health and Function 2-31

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

North Texas Burn Rehabilitation Model System (NTBRMS)

The University of Texas Southwestern Medical Center

Department of Physical Medicine and Rehabilitation

5323 Harry Hines Boulevard

Dallas, TX 75390-9136

radha.holavanahalli@utsouthwestern.edu

http://www.swmed.edu/ntbrms/welcome.htm

Principal Investigator: Karen Kowalske, MD 214/648-2288

Public Contact: Radha Holavanahalli, PhD 214/648-9540; 214/648-3654; Fax: 214/648-2005

Project Number: H133A020104

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000; FY 03 $300,000; FY 04 $300,000; FY 05 $300,000

Abstract: This project conducts five research projects, two collaborative and three site-specific: (1)

barriers to return-to-work following major burn injury; (2) long-term outcome following major burn

injury; (3) outcome following deep, full-thickness hand burns; (4) the evolution over time of burnassociated neuropathy; and (5) the socioeconomic determinants of disability in individuals with burn

injury. The North Texas Burn Rehabilitation Model System (NTBRMS) is a collaboration of Parkland

Health and Hospital System (PHHS) and the University of Texas, Southwestern Medical Center

(UTSW). Collaboration occurs on many levels at the NTBRMS. Clinical collaboration is the hallmark

of the burn team, which includes individuals from several institutions who work together seamlessly, as

well as collaboration with rural care providers through rural clinics and a biannual seminar. Research

collaboration occurs locally with the surgeons and academic computing staff, and nationally with the

other model systems.
2-32 NIDRR Program Directory FY 2005 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

North Texas Traumatic Brain Injury Model System (NT-TBIMS)

The University of Texas Southwestern Medical Center

Department of Neurology

5323 Harry Hines Boulevard

Dallas, TX 75390-9036

caryn.harper@utsouthwestern.edu

http://www.utsouthwestern.edu

Principal Investigator: Ramon R. Diaz-Arrastia, MD, PhD 214/648-6409

Public Contact: Caryn R. Harper, MS, Project Administrator 214/648-7613; Fax: 214/648-3143

Project Number: H133A020526

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $364,999; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: The North Texas Traumatic Brain Injury Model System (NT-TBIMS) provides a comprehensive continuum of care for TBI patients from the time of arrival at the emergency department

through the intensive care unit, inpatient and outpatient rehabilitation, and long-term follow-up after

community integration. Additionally, the NT-TBIMS conducts two research projects aimed at obtaining predictive information regarding outcome after TBI, which is important to the goal of developing

novel therapies and tailoring these therapies to individual patients: (1) to determine whether the inheritance of particular alleles in certain candidate genes is associated with a greater risk of poor outcome

after TBI; and (2) to determine whether functional magnetic resonance imaging of the brain (fMRI) is

predictive of functional recovery after TBI.
NIDRR Program Directory FY 2005 - Health and Function 2-33

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Pediatric Burn Injury Rehabilitation Model System

University of Texas Medical Branch

815 Market Street, Route 1220

Galveston, TX 77550

dherndon@utmb.edu; patblakeney@earthlink.net; Jlbailey@utmb.edu

Principal Investigator: David Herndon, MD 409/770-6731

Public Contact: Pat Blakeney, PhD 409/770-6718 or 713/661-1745; 409/770-6731; Fax: 713/661-

2871; 409/770-6919

Project Number: H133A020102

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000; FY 03 $300,000; FY 04 $300,000; FY 05 $300,000

Abstract: This program conducts independent and multi-center projects focusing on evaluating and

improving the rehabilitation provided to the burned child, striving to decrease disability and improve

reintegration into society. The project continues longitudinal assessments of patients, expanding the

database that includes measures of cardiopulmonary function, physical growth and maturation, bone

density, range of motion, activities of daily living, scar formation, reconstructive needs, and measures

of psychosocial adjustment. This data is used to identify areas that require improvement and provide

functional outcome measures that can be used in the evaluation of treatment methods. Research activities include: (1) a multi-center project assessing the efficacy of the long-term administration of

oxandrolone in the treatment of burn injury with endpoints of improved strength, lean body mass, bone

density, and growth; (2) improving rehabilitative outcomes for children by instituting and evaluating

major modifications to current treatment for children with large burns; (3) evaluating the use of pressure garments in controlling scar following burn injury; (4) a multi-center study evaluating the relationship between treatment, injury, patient characteristics, and patient outcome in those patients sustaining

full thickness hand burns; and (5) evaluating acute stress disorder and posttraumatic stress disorder,

including its occurrence, predictive elements, and efficacy of treatment.
2-34 NIDRR Program Directory FY 2005 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Virginia

Virginia Commonwealth Traumatic Brain Injury Model System

Virginia Commonwealth University

Department of Physical Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0452

jhmarwit@vcu.edu

http://www.tbi.pmr.vcu.edu

Principal Investigator: Jeffrey S. Kreutzer, PhD 804/828-9055

Public Contact: Jennifer Marwitz 804/828-3704; Fax: 804/828-2378

Project Number: H133A020516

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: This project, utilizing rigorous scientific methods, examines the benefits of intervention

during the acute and post-acute periods after brain injury. TBIMS and other researchers have primarily

focused on delineating outcomes. Until recently, concerns about survivors’ emotional well-being and

adjustment to injury received scant attention. Yet, recent studies have identified a high prevalence of

depression, with many survivors reporting feelings of hopelessness, diminished self-esteem, and social

isolation. Brain injury also affects the family system; family members commonly describe emotional

distress, lack of respite, financial stress, and lack of community support. Projects in three major research areas focus predominantly on survivors. One study examines pharmacological approaches to

the treatment of depression, while another examines a structured approach to the treatment of acute

cognitive and neurobehavioral problems. Examining the benefits of intervention programs for family

members is the third major research area.
NIDRR Program Directory FY 2005 - Health and Function 2-35

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

University of Washington Burn Injury Rehabilitation Model System

University of Washington

Department of Surgery

Division of Plastic Surgery

Harborview Medical Center

325 Ninth Avenue; Box 359796

Seattle, WA 98104

rassilon@u.washington.edu

http://faculty.washington.edu/engrav/index.html

Principal Investigator: Loren H. Engrav, MD 206/731-3183

Public Contact: Adrian Nelsen 206/731-2938; Fax: 206/731-3656

Project Number: H133A020103

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000; FY 03 $300,000; FY 04 $300,000; FY 05 $300,000

Abstract: This model system conducts five research projects: (1) A New Approach to the Etiology of

Hypertrophic Scarring: develops an increased understanding of hypertrophic scarring. (2) Effect of

Virtual Reality on Active Range-of-Motion During Physical Therapy: uses distraction via immersive

virtual reality as an adjunctive non-pharmacologic analgesic. This study tests the hypothesis that virtual

reality allows patients to tolerate greater stretching during physical therapy compared to no distraction,

and that in spite of achieving greater range-of-motion, patients still experience lower pain levels while

in virtual reality. (3) Determination of Reasons for Distress in Burn-Injured Adults: identifies reasons

behind a burn survivor’s distress at various time-points after hospital discharge. (4) Barriers for Return

to Work: identifies specific barriers to return to work for burn survivors. (5) Acute Stress Disorder

Among Burn Survivors: evaluates the effectiveness of cognitive-behavioral therapy, relative to a nondirective, supportive therapy control group, and a national comparison sample in reducing the prevalence of posttraumatic stress disorder diagnosis and symptom severity. Projects 4 and 5 are collaborative. In addition this project participates in the national database.
2-36 NIDRR Program Directory FY 2005 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

University of Washington Traumatic Brain Injury Model System

University of Washington

Department of Rehabilitation Medicine

Box 356490, BB-953 Health Sciences

Seattle, WA 98195

krbell@u.washington.edu

http://depts.washington.edu/rehab/tbi

Principal Investigator: Kathleen R. Bell, MD

Public Contact: 206/685-0935; Fax: 206/685-3244

Project Number: H133A020508

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: This program conducts research relevant to TBI, enhances services to consumers, and

furthers the National Database and intersystem collaboration. The program’s three research projects

are: (1) a randomized controlled intervention study examining the effect of exercise on depression after

TBI. This low-cost, community intervention seeks to combat depression and emotional distress in

persons with stable TBI by employing exercise as a positive approach to improved emotional and

physical functioning and socialization. (2) An examination of the characteristics of TBI survivors who

are able to return to employment and hold jobs that are stable and complex in nature, utilizing both the

UW TBI longitudinal database and the Model System database. (3) An examination of the impact of

the Medicare prospective payment system for inpatient rehabilitation on TBI survivors receiving access

to acute rehabilitation efforts. The program also contributes to the National Database.
NIDRR Program Directory FY 2005 - Health and Function 2-37

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

The Effect of Scheduled Telephone Intervention on Outcomes After

Traumatic Brain Injury (TBI)

University of Washington

Department of Rehabilitation Medicine

Box 356490, BB-953 Health Sciences

Seattle, WA 98195

krbell@u.washington.edu

http://depts.washington.edu/rehab/tbi

Principal Investigator: Kathleen R. Bell, PhD

Public Contact: 206/685-0935; Fax: 206/685-3244

Project Number: H133A040004

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $600,000; FY 05 $600,000

Abstract: This project evaluates the effect of scheduled telephone intervention (STI), a low-cost,

easily implemented intervention in three states on functional and health outcomes, at weeks 1-2, 4, 8,

and 12, and months 5, 7, and 9 on functional level, health and emotional status, community integration,

and perceived quality of well-being over one year after TBI. Timely intervention to identify problems

after TBI, to teach patients and their families coping techniques within their own communities and

support their independent decision-making may effectively decrease the need for expensive and often

inaccessible services and may improve the quality of life for survivors of TBI. Researchers are evaluating the effect of additional STI at months 15, 18, and 21 on the same variables and employment at two

years after TBI. Research examines whether the effects of such intervention are similar in multiple sites

over a wide geographic area. It also examines the differential impact of the intervention in demographic subgroups, with particular attention to minority versus non-minority racial and ethnic populations.
2-38 NIDRR Program Directory FY 2005 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Alabama

UAB Model Spinal Cord Injury Care System

University of Alabama/Birmingham

Spain Rehabilitation Center

619-19th Street South SRC 529

Birmingham, AL 35249-7330

mott@uab.edu

http://main.uab.edu/show.asp?durki=10712

Principal Investigator: Amie B. Jackson, MD 205/934-3330

Public Contact: Pamela K. Mott, Director, Research Services 205/934-3283 (V); 205/934-4691

(TTY); Fax: 205/975-4642

Project Number: H133N000016

Start Date: October 01, 2000

Length: 72 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $340,000; FY 01 $340,000; FY 02 $340,000; FY 03 $340,000; FY 04

$340,000; FY 05 $340,000

Abstract: The purpose of the University of Alabama at Birmingham Spinal Cord Injury Care System

(UAB-SCICS) program is to provide cutting edge, cost effective, comprehensive care from the moment of injury across the life span for persons who incur an SCI; to investigate ways of improving

aspects of that system of care through clinical research; and to disseminate project research findings to

persons with SCI, their family members, and professional care providers. UAB-SCICS includes two

research projects: (1) investigating musculoskeletal/spine changes in post-menopausal women with

SCI; and (2) completing a longitudinal investigation of the processes involved in coming to terms with

disability over the first year post-injury. UAB-SCICS maintains linkages with emergency medical

service agencies throughout the state, with state and local VR and long-term follow-up programs, with

clinically oriented research activities within the UAB-SCICS itself, with UAB’s companion Medical

RRTC on Secondary Conditions of SCI, as well as with clinical research programs being conducted at

other Model SCI Systems. The UAB-SCICS currently maintains the National Spinal Cord Injury

Statistical Center.
NIDRR Program Directory FY 2005 - Health and Function 2-39

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

California

Regional Spinal Cord Injury Care System of Southern California

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, HB117

Downey, CA 90242-4155

rwaters@dhs.co.la.ca.us; rodjean@comcast.net

Principal Investigator: Robert L. Waters, MD; Rod Adkins, PhD; 562/401-7048

Public Contact: 562/401-8956; Fax: 562/401-7897

Project Number: H133N000029

Start Date: September 01, 2000

Length: 72 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $345,000; FY 01 $345,000; FY 02 $345,000; FY 03 $345,000; FY 04

$345,000; FY 05 $345,000

Abstract: The Regional Spinal Cord Injury Care System of Southern California’s primary mission is

to collect initial and follow-up data on persons who have sustained spinal cord injuries and submit it to

the national statistics database at the University of Alabama at Birmingham. Another component of the

project focuses on literacy in individuals with SCI. Also, the project identifies, evaluates, and eliminates environmental barriers, particularly cultural and social barriers, to enable people with SCI to

reintegrate fully into their community, and thus improve their lives. The project has been designed to

meet the needs of the approximately 75 percent minority and underserved populations that comprise its

clientele, and has samples sufficient for achieving adequate statistical power in the relevant designs and

producing meaningful research. Finally, the System contributes new and useful information to the

current collection of SCI literature. This project contributes to the national statistics database at the

University of Alabama at Birmingham.
2-40 NIDRR Program Directory FY 2005 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

California

Model Spinal Cord Injury System

Santa Clara Valley Medical Center (SCVMC)

Rehabilitation Research Center

751 South Bascom Avenue

San Jose, CA 95128

jerry.wright@hhs.co.scl.ca.us

http://www.tbi-sci.org

Principal Investigator: Tamara Bushnik, PhD 408/793-6446

Public Contact: 408/793-6433; Fax: 408/793-6434

Project Number: H133N000007

Start Date: October 01, 2000

Length: 72 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $340,000; FY 01 $340,000; FY 02 $340,000; FY 03 $340,000; FY 04

$340,000; FY 05 $340,000

Abstract: The system of care at the Santa Clara Valley Medical Center (SCVMC) that extends from

the scene of the accident to community reintegration has been developed through a program encompassing services, teaching and demonstration, and clinical research activities in its northern and central

California and Nevada catchment area. This effort continues to include community agency staff and

consumers and has produced a network of services addressing the needs of individuals with SCI.

Based on input from consumers and their family members, community organizations, rehabilitation

health professionals, and the rehabilitation literature, the research program studies: (1) the efficacy of

peer support, both group and one-on-one mentoring, to improve quality of life, physical and psychosocial status, and community participation and integration; (2) if a regular exercise program can improve

the above mentioned community outcomes; (3) the effect of high personal attendant turnover on the

above mentioned variables and whether an intervention can decrease that turnover and improve outcomes; and (4) the provision of SCI-specific education and whether improving knowledge improves

outcomes. This project contributes to the national statistics database at the University of Alabama at

Birmingham.
NIDRR Program Directory FY 2005 - Health and Function 2-41

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Colorado

The Rocky Mountain Regional Spinal Injury System

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

susie@craighospital.org

http://www.craighospital.org

Principal Investigator: Daniel P. Lammertse, MD; Gale G. Whiteneck, PhD 303/789-8220

Public Contact: Gale G. Whiteneck, PhD 303/789-8204 (V); 303/789-8575 (TTY); Fax: 303/789-

8441

Project Number: H133N000001

Start Date: October 01, 2000

Length: 72 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $375,000; FY 01 $375,000; FY 02 $375,000; FY 03 $375,000; FY 04

$375,000; FY 05 $375,000

Abstract: The Rocky Mountain Regional Spinal Injury System emphasizes research and significant

contributions that have been made in the areas of SCI costs of care, aging, outcome assessment, high

tetraplegia, neurorehabilitative surgery, and program evaluation, as well as participation in randomized

controlled multicenter clinical trials. An integrated research agenda includes a controlled clinical trial of

therapy for shoulder pain and evaluations of longitudinal outcomes of surgery for spinal cord myelopathies, recovery from pressure sore surgery, perimenopausal symptoms and treatments in women with

SCI, the issues of women who provide assistance to a partner with SCI, and the impact of environmental barriers on the full participation of people with SCI. The project includes two highly regarded Level

I trauma centers with specialized acute neurotrauma care facilities (St. Anthony Hospital and Swedish

Medical Center) and the rehabilitation and lifetime follow-up services of Craig Hospital. These facilities bring together a full complement of disciplines and specialists, medically directed by six full-time

physicians specializing in SCI acute care and rehabilitation management, to provide all components of

a model system of care. This project contributes to the national statistics database at the University of

Alabama at Birmingham.
2-42 NIDRR Program Directory FY 2005 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Florida

South Florida Regional Spinal Cord Injury Model System

University of Miami

School of Medicine

P.O. Box 016960 (D-461)

Miami, FL 33101

m.sipski@miami.edu

http://www.sci.med.miami.edu/index.asp

Principal Investigator: Marca L. Sipski, MD 305/585-1328

Public Contact: 305/585-1339; Fax: 305/585-1340

Project Number: H133N000017

Start Date: October 01, 2000

Length: 72 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $375,000; FY 01 $320,000; FY 02 $320,000; FY 03 $320,000; FY 04

$320,000; FY 05 $320,000

Abstract: The South Florida Spinal Cord Injury System (SFSCIS) is a cooperative effort between the

University of Miami School of Medicine, The Miami Project to Cure Paralysis, Jackson Memorial

Hospital, and the Miami VA Medical Center. The SFSCIS is a multidisciplinary system of care providing comprehensive rehabilitation services specifically designed to meet the special needs of individuals

with spinal cord injuries. The clinical components of the SFSCIS include emergency medical services,

acute care, vocational and other rehabilitation services, community and job placement, and long-term

community follow-up and health maintenance. A comprehensive prevention program is included in the

program. A significant and substantial research program focuses on the maintenance of health and

function; three clinical trials and five major research projects are included. Each of these projects

centers on studying interventions to improve outcomes in the preservation or restoration of function

following SCI. In addition to these research projects, this project contributes to the National Spinal

Cord Injury Database. A program designed for widespread dissemination of research and demonstration findings is included. In addition, culturally appropriate methods of education, training, and outreach are interwoven throughout the projects. Finally, the program includes a comprehensive evaluation program.
NIDRR Program Directory FY 2005 - Health and Function 2-43

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Georgia

Georgia Regional Spinal Cord Injury Care System

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road Northwest

Atlanta, GA 30309-1465

lesley_hudson@shepherd.org

http://www.shepherd.org

Principal Investigator: David F. Apple, Jr., MD 404/350-7353

Public Contact: Lesley M. Hudson, MA, Project Co-Director 404/350-7591; Fax: 404/355-1826

Project Number: H133N000005

Start Date: September 30, 2000

Length: 72 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $374,992; FY 01 $374,992; FY 02 $374,992; FY 03 $374,992; FY 04

$374,992; FY 05 $374,992

Abstract: The Georgia Regional Spinal Cord Injury Care System admits approximately 200 individuals annually with acute onset paralysis secondary to spinal cord injury, and collects post-discharge data

on 600 individuals each year. Its patient population comes primarily from Georgia, the rest of the

Southeast, and the Eastern Seaboard. The continuum of care begins at injury and continues through

transport, assessment, acute care, rehabilitation, emotional adjustment, community reintegration, and

lifetime follow-up. The program is involved with site-specific research projects on incomplete spinal

cord injuries, enhanced long distance technological communications with patients, and the determination of early predictors of secondary complications. As part of the clinical research activity sponsored

by the facility’s Crawford Research Institute, the program is responsible for ongoing referrals of

individuals with acute injury, as well as long-term follow-up and data collection. This project contributes to the national Model Spinal Cord Injury System (SCIS) national database at the University of

Alabama at Birmingham.
2-44 NIDRR Program Directory FY 2005 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Massachusetts

The New England Regional Spinal Cord Injury Center

Boston University Medical Center Hospital

Department of Rehabilitation Medicine

Preston F-511

732 Harrison Avenues

Boston, MA 02118-2393

jane.wierbicky@bmc.org

http://www.bumc.bu.edu/Dept/Content.aspx?DepartmentID=91&PageID= 332

Principal Investigator: Steve Williams, MD

Public Contact: Jane Wierbicky; Claudine DeJoie 617/638-7316 (Wierbicky); 617/638-7389

(DeJoie); Fax: 617/638-7313

Project Number: H133N000024

Start Date: October 01, 2000

Length: 72 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $374,514; FY 01 $300,000; FY 02 $300,000; FY 03 $300,000; FY 04

$300,000; FY 05 $300,000

Abstract: The New England Regional Spinal Cord Injury Center (NERSCIC) operates through a

joint partnership between the Boston Medical Center (BMC) and the Boston University School of

Public Health (BUSPH). While acute care and rehabilitation are administered at BMS, BUSPH plays

an equally important role in developing research, education, and training projects to meet the needs of

people with SCI. Additionally, NERSIC maintains a research partnership with Boston’s Spaulding

Rehabilitation Hospital and Woburn HealthSouth Rehabilitation Hospital. Additionally, NERSCIC has

initiated collaboration with Gaylord Hospital. The Model SCI System includes multiple projects: (1) a

pilot study on the effects of Internet access upon the health and social interactions of people with SCI;

(2) a study of building accessibility in eastern Massachusetts; (3) the development of a consumer-rated

Internet guide based on input from individuals with SCI; (4) an employment study, providing comprehensive services to chronically unemployed individuals with SCI; (5) a study of the relationship

between pain severity and participation in paid employment and/or education for persons with SCI.

This project contributes to the national statistics database at the University of Alabama at Birmingham.

NERSCIC also publishes a quarterly newsletter.
NIDRR Program Directory FY 2005 - Health and Function 2-45

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Michigan

University of Michigan Model Spinal Cord Injury Care System

University of Michigan

Department of Physical Medicine and Rehabilitation

300 North Ingalls, Room NI2A09

Ann Arbor, MI 48109-0491

model.sci@umich.edu

http://www.med.umich.edu/pmr/modelsci/index.htm

Principal Investigator: Denise G. Tate, PhD; David R. Gater, MD, PhD 734/763-0971

Public Contact: Claire Z. Kalpakjian, PhD, Research Associate 734/763-9374; Fax: 734/936-5492

Project Number: H133N000009

Start Date: November 01, 2000

Length: 72 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $320,000; FY 01 $320,000; FY 02 $320,000; FY 03 $320,000; FY 04

$320,000; FY 05 $320,000

Abstract: The University of Michigan Model Spinal Cord Injury Care System provides comprehensive care and services to both children and adults, and is the only facility in Michigan to care for

ventilator-dependent persons of all ages with SCI. The project objectives are to: (1) provide a continuum of comprehensive, multidisciplinary services for persons with SCI, from emergency medical

services to long-term community follow-up, with a focus upon maintaining health; (2) demonstrate the

effects of the continuum of comprehensive services, focusing on its efficacy in promoting employment,

health maintenance and wellness, independent living, and community reintegration; (3) conduct

significant research, using a participatory action research approach involving consumer input from

inception through implementation; (4) operate an efficient service system; and (5) develop and demonstrate methods of community outreach and education in collaboration with the Ann Arbor Center for

Independent Living (AACIL) to reach professionals, consumers, and their families in other rehabilitation facilities and Centers for Independent Living in Michigan. These objectives emphasize community

reintegration as a key outcome. The Model System is in collaboration with the AACIL, with the goal

of promoting community reintegration. This partnership ensures a coordinated approach to clinical

care, training, and research that integrates consumer empowerment with comprehensive lifelong

follow-up, bringing a consumer-professional synergy to the project that serves as an example for other

Model SCI Systems. This project contributes to the national statistics database at the University of

Alabama at Birmingham.
2-46 NIDRR Program Directory FY 2005 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Missouri

Missouri Model Spinal Cord Injury System

University of Missouri/Columbia

Department of Health Psychology

One Hospital Drive, DC046.46

Columbia, MO 65212

nossamanl@health.missouri.edu

http://www.hsc.missouri.edu/~momscis

Principal Investigator: Laura H. Schopp, PhD, ABPP 573/888-8847

Public Contact: Larry Nossaman 573/884-2899 (V); 573/882-7971 (TTY); Fax: 573/884-2902

Project Number: H133N000012

Start Date: October 01, 2000

Length: 72 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $300,000; FY 01 $300,000; FY 02 $300,000; FY 03 $300,000; FY 04

$300,000; FY 05 $300,000

Abstract: The Missouri Model Spinal Cord Injury System (MOMSCIS) is committed to developing,

implementing, and evaluating innovative research promoting independent living and community

integration among persons with spinal cord impairment. The study focuses on the effect of a consumerdirected personal assistance services training intervention on consumer satisfaction, independent living,

and community integration. The study develops, implements and evaluats the in-person Individualized

Management of Personal Assistant/Consumer Teams (IMPACT) workshop. Workshop participants

receive information on preventing and treating secondary medical conditions, including pressure sores,

urinary tract infections, bowel and bladder management, autonomic dysreflexia, pain management,

chronic fatigue, and thermoregulation, and information on relationship issues, such as hiring and firing,

communication styles and strategies, assertiveness, and team building. Study objectives are: (1) to

determine the effect of the IMPACT workshop on consumer satisfaction, the incidence of secondary

conditions, activity, and participation (as defined by the ICF); (2) to determine the effect of the IMPACT workshop on personal assistants’ job satisfaction, job stress and attrition; and (3) to provide

online resources to the disability community, including an online personal assistant training manual for

consumers and assistants, and an online resources database. Activity and participation are measured by

the PARTicipation Survey for persons with Mobility Limitations (PARTS/M).
NIDRR Program Directory FY 2005 - Health and Function 2-47

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

New Jersey

Northern New Jersey Spinal Cord Injury System

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052-1499

dtulsky@kmrrec.org

http://www.kmrrec.org/KM/nnjscis/index.php3

Principal Investigator: David Tulsky, PhD 973/243-6849

Public Contact: David S. Tulsky, PhD 973/243-6849; 973/243-6916; Fax: 973/243-3527

Project Number: H133N000022

Start Date: September 01, 2000

Length: 72 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $345,000; FY 01 $344,724; FY 02 $345,000; FY 03 $345,000; FY 04

$345,000; FY 05 $345,000

Abstract: The Northern New Jersey Spinal Cord Injury System (NNJSCIS) attempts to improve

outcomes for persons with SCI through novel interventions and expanded service delivery options.

The NNJSCIS is composed of Kessler Medical Rehabilitation Research and Education Corporation,

Kessler Institute for Rehabilitation, and University of Medicine and Dentistry of New Jersey-University Hospital. The NNJSCIS has an interdisciplinary system of rehabilitation care specifically designed

to meet the needs of individuals with SCI. It includes emergency medical services; acute care; psychological, social, and vocational services; peer support; independent living services; community and job

placement, long-term community follow-up; and health maintenance. Some of the research and demonstration projects target three of the most common secondary conditions (pressure ulcers, shoulder

pain, and urinary tract infections). Other studies promote wellness by reducing obesity, examine the

relation between health literacy and outcomes, and identify risk factors and prevent potential problems.

One project operationalizes the newly developed Clinical Practice Guidelines. The NNJSCIS contributes to the National Statistics Data Center.
2-48 NIDRR Program Directory FY 2005 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

New York

Mount Sinai Spinal Cord Injury Model System

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

One Gustave L. Levy Place; Box 1240

New York, NY 10029-6574

marcel.dijkers@mssm.edu

http://www.mssm.edu/rehab/spinal

Principal Investigator: Kristian T. Ragnarsson, MD

Public Contact: Marcel Dijkers, PhD 212/659-9340; Fax: 212/348-5901

Project Number: H133N000027

Start Date: October 01, 2000

Length: 72 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $320,000; FY 01 $320,000; FY 02 $320,000; FY 03 $320,000; FY 04

$320,000; FY 05 $320,000

Abstract: The Mount Sinai Spinal Cord Injury Model System (MS-SCI-MS) of the Department of

Rehabilitation Medicine of Sinai Hospital (MSH) and the Mount Sinai School of Medicine (MSSM) in

New York City provides comprehensive care to meet the diverse needs of persons with SCI in its

catchment area. There are four components of the system: (1) comprehensive clinical care; (2) research

(both center-specific research and contributions to the national statistics database); (3) dissemination,

education, and training; and (4) injury prevention. The comprehensive clinical program stresses interdisciplinary care, and employs a primary team model to enhance coordination among caregivers.

Comprehensive outpatient rehabilitation services and long-term follow-up at MSH are also included.

Rehabilitation services include an evaluation program for a high-tech wheelchair and seating system, a

lower-extremity functional electrical stimulation ergometry program, psychosocial services, extensive

VR services, a consumer-directed program to promote community reintegration (DO IT!), and a

women’s peer group, and formal and informal peer mentoring programs, as well as a Life Challenge

program. Specialty medical and surgical services include a fertility program for males with ejaculatory

dysfunction, intrathecal pumps for treatment of spasticity, upper extremity reconstruction, and cuttingedge technology. An approach to screening and early intervention of secondary medical conditions is a

preventive health care demonstration project. The research program of MS-SCI-MS consists of two

studies relevant to one of the most disabling secondary conditions of SCI, chronic pain: (1) metaanalyses of pain reports and pain treatments; and (2) a prospective study of pain. This project contributes to the national statistics database at the University of Alabama at Birmingham.
NIDRR Program Directory FY 2005 - Health and Function 2-49

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Pennsylvania

Demonstration of a Model Spinal Cord Injury System Center

Thomas Jefferson University

Regional Spinal Cord Injury Center of the Delaware Valley

132 South 10th Street

375 Main Building

Philadelphia, PA 19107-5244

mary.patrick@jefferson.edu

http://www.spinalcordcenter.org

Principal Investigator: John F. Ditunno, Jr., MD 215/955-5580

Public Contact: Mary Patrick 215/955-6579; Fax: 215/955-5152

Project Number: H133N000023

Start Date: September 01, 2000

Length: 72 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $370,000; FY 01 $370,000; FY 02 $370,000; FY 03 $370,000; FY 04

$370,000; FY 05 $370,000

Abstract: The Regional Spinal Cord Injury Center of Delaware Valley (RSCICDV) is a comprehensive program of coordinated patient care, education, and research activities. The RSCICDV: (1)

conducts on-site research focusing on improved outcome measures to meet Federally established

objectives; (2) refines and improves the RSCICDV’s operational services and demonstration projects;

and (3) conducts two development projects including development of an SCI website and development

of a Pressure Sore Program. The on-site research includes four experiments: (1) validation of the

Walking Index of Spinal Cord Injury (WISCI) scale in a clinical setting for severity and hierarchical

ranking; (2) validation of WISCI scale for elements of a disability measure for distance, speed, and

endurance into WISCI levels; (3) demonstration that the WISCI scale is responsive to change in a

clinical trial setting; and (4) demonstration of consumer preference for walking. The four development

projects include: (1) improved access to information via the web site; (2) implementation of a critical

pathway for more efficient heathcare delivery; (3) increased employment and advancement of employment through hireAbility; and (4) increased monitoring of pressure sores and strategies for prevention.

This project contributes to the national statistics database at the University of Alabama at Birmingham.
2-50 NIDRR Program Directory FY 2005 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Pennsylvania

University of Pittsburgh Model Center on Spinal Cord Injury

University of Pittsburgh

7180 Highland Drive, 151R-1

Pittsburgh, PA 15206

boninger@pitt.edu

http://www.upmc-sci.org

Principal Investigator: Michael L. Boninger, MD 412/365-4861

Public Contact: Fax: 412/365-4858

Project Number: H133N000019

Start Date: December 01, 2000

Length: 72 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $320,000; FY 01 $320,000; FY 02 $320,000; FY 03 $320,000; FY 04

$320,000; FY 05 $320,000

Abstract: The University of Pittsburgh Model Center on Spinal Cord Injury (UPMC-SCI) represents

the efforts of dedicated consumers, clinicians, and researchers. The UPMC-SCI’s research focus is on

innovations in AT. The research projects evaluate the impact of selected innovations in technology on

service delivery and on outcomes such as function, independence, and employment. One project is

addressing a shortcoming in AT research through the use of a new dynamic outcome measure developed by David Gray PhD. Researchers are also testing an innovative pushrim-activated, powerassisted wheelchair that has great potential to improve mobility for individuals with tetraplegia. In a

third project, researchers are examining an innovative technology in the form of an exercise system

(GAMECycle) to increase cardiovascular fitness in a population with SCI. The GAMECycle is an

interface between a personal computer and an arm ergometer allowing for computer play while exercising. An additional project is testing a Seating and Mobility Concordance Test (SMCT) to determine

if this measure is capable of discriminating among clinicians with differing levels of experience in

seating and mobility prescription in SCI. In addition to this research, the center provides a model of

care for individuals with SCI. SCI care at the University of Pittsburgh is provided in a multidisciplinary

manner with a high level of communication among the constituent services. The fully implemented

system of continuity of treatment begins with the emergency response at the scene of injury and

continues with comprehensive treatment and rehabilitation from medical/surgical- to acute-stage

rehabilitation through utilization of AT services and VR.
NIDRR Program Directory FY 2005 - Health and Function 2-51

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Texas

Texas Model Spinal Cord Injury System

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Street

Houston, TX 77030-3408

khart@bcm.tmc.edu

http://www.bcm.tmc.edu/pm&r/sci/research/modelsystem

Principal Investigator: William H. Donovan, MD 713/797-5912

Public Contact: Karen A. Hart, PhD 713/797-5946 (V); 713/797-5790 (TTY); Fax: 713/797-5982

Project Number: H133N000004

Start Date: September 01, 2000

Length: 72 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $330,000; FY 01 $330,000; FY 02 $330,000; FY 03 $330,000; FY 04

$330,000; FY 05 $330,000

Abstract: The Texas Model Spinal Cord Injury System (TMSCIS) provides services along the entire

continuum of care from emergency medical service to long-term follow-up and management of secondary conditions. TMSCIS performs an analytic longitudinal investigation of disability models to

explore and quantify the interaction among various individual and environmental variables. TMSCIS

operationalizes the Institute of Medicine model of disability utilizing state-of-the-art measurement

techniques and comprehensive statistical approaches to test hypotheses about dynamic interrelations of

persons with SCI and their environment. This investigation involves following newly injured persons

with SCI for two years after injury. Measurements are taken of pre-injury life conditions, enabling

processes, as well as personal, psychological, and physical environments. This project contributes to

the national statistics database at the University of Alabama at Birmingham. In addition, the project

develops and tests theoretically derived structural models from the national database and other existing

data sources.
2-52 NIDRR Program Directory FY 2005 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Virginia

VCU Model Spinal Cord Injury Center

Virginia Commonwealth University

School of Medicine

Department of Physical Medicine and Rehabilitation

Box 980661

Richmond, VA 23298-0661

wmckinle@hsc.vcu.edu

http://www.sci.pmr.vcu.edu/

Principal Investigator: William O. McKinley, MD; David X. Cifu, MD

Public Contact: Michelle Meade, PhD 804/828-5401; Fax: 804/828-6340

Project Number: H133N000015

Start Date: October 01, 2000

Length: 72 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $310,000; FY 01 $310,000; FY 02 $310,000; FY 03 $310,000; FY 04

$310,000; FY 05 $310,000

Abstract: This project develops and implements a Model Spinal Cord Injury System at Virginia

Commonwealth University/Medical College of Virginia (VCU/MCV), that has a concentrated emphasis on employment. Researchers within this Model Systems systematically monitor and assess the

impact of interventions, advancing technology, and policy changes on employment following SCI. In

addition to contributing to the National Statistical Database at the University of Alabama at Birmingham, the VCU SCI Model System has three research studies. These studies involve the direct utilization of the SCI National Database, a major employment policy study across 18 states, and also an

evaluation of technology training on employment of outcome. Involvement of SCI mentors in training

new vocational mentors with SCI is also an important aspect of the project. By looking at the issues

associated with employment for persons with SCI, this project complements other resources in place

within VCU/MCV, including the RRTC on Workplace Supports, long-term relationships with the

Virginia Department of Rehabilitation Services, and existing SCI Model Systems delivery of care. A

significant number of persons with disabilities are involved as project staff as well as on an Advisory

Board. A close relationship with the Mid-Atlantic Paralyzed Veterans Association (PVA) enhances

training, dissemination, and otherd: outreach activities.
NIDRR Program Directory FY 2005 - Health and Function 2-53

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Washington

Northwest Regional Spinal Cord Injury System

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98105-6613

scirehab@u.washington.edu

http://depts.washington.edu/rehab/sci

Principal Investigator: Diana D. Cardenas, MD; Charles Bombardier, PhD 206/543-8171

Public Contact: Cynthia Salzman 206/685-3999; Fax: 206/685-3244

Project Number: H133N000003

Start Date: September 01, 2000

Length: 72 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $330,000; FY 01 $330,000; FY 02 $330,000; FY 03 $330,000; FY 04

$330,000; FY 05 $330,000

Abstract: The University of Washington’s Northwest Regional Spinal Cord Injury System

(NWRSCIS) serves a critical mass of patients with SCI and has all the necessary disciplines to provide

state-of-the-art medical, surgical, and rehabilitation care. NWRSCIS has four objectives: (1) examine

interventions to improve outcomes in the preservation or restoration of function or the prevention and

treatment of secondary conditions; (2) contribute to the national database; (3) maintain specialized

clinical programs; and (4) develop and maintain education programs for consumers and families,

especially for those who belong to minority and disadvantaged groups. In addition, the Center provides

for the widespread dissemination of research and demonstration findings through its publications and

website. This project contributes to the national statistics database at the University of Alabama at

Birmingham.
2-54 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Alabama

Constraint-Induced Movement Therapy Modified for Rehabilitating

Arm Function in Stroke Survivors with Plegic Hands

University of Alabama

1530 3rd Avenue, South, CPM 722

Birmingham, AL 35294-0018

kreative@uab.edu

Principal Investigator: Gitendra Uswatte, PhD 205/975-5089

Public Contact: Sonya Williamson 205/934-5601; Fax: 205/975-6140

Project Number: H133G050222

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 05 $149,891

Abstract: Based on positive findings from a pilot study, this project conducts a randomized, controlled

clinical trial to rigorously test the efficacy of a modification of Constraint-Induced Movement (CI)

therapy for rehabilitating arm function in chronic stroke patients with severe upper-extremity impairment. CI therapy is a rehabilitation method that has been shown in controlled studies to produce large

improvements in real-world upper-extremity use in individuals with chronic stroke. Up till now,

survivors of stroke with plegic hands have been excluded from CI therapy protocols, whether on a

research or clinical basis. In the modified therapy, participants receive CI therapy, combined with other

treatment modalities, for six hours per day. The treatment package includes tone management/movement facilitation, training of more-impaired arm use using shaping, functional task practice, restraint of

the less-impaired arm in the laboratory and at home, and a package of behavioral methods for transferring gains from the laboratory to the home situation. Participants are also introduced to assistive and

orthotic devices that might facilitate use of their more-impaired arm in their daily life.
NIDRR Program Directory FY 2005 - Health and Function 2-55

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Improving Muscular Use and Cardio-Respiratory Demand in SpinalCord-Injured Patients Performing Functional Electronically

Stimulated Leg

University of California, Davis

Department of Mechanical and Aeronautical Engineering

2060 Bainer Hall

Davis, CA 95616

mlhull@ucdavis.edu

Principal Investigator: Maury Hull, PhD

Public Contact: 530/752-6220; Fax: 530/752-4158

Project Number: H133G020137

Start Date: January 01, 2003

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 02 $149,971; FY 03 $146,330; FY 04 $144,845; FY 05 $0 (No-cost extension

through 12/31/2006)

Abstract: This project develops new stimulation patterns for a functional electrically stimulated (FES)

leg cycle ergometer (LCE) that enable persons with spinal cord injuries to exercise with greater benefit.

Greater benefit is defined as exercising for a longer period of time and at a higher work rate while

involving more leg muscles than is possible with existing ergometers. To reach the general aim, the

research is divided into three phases, each directed towards testing a specific hypothesis: (1) normal

recumbent pedaling can be simulated using a computational musculoskeletal model of the leg; (2)

minimizing muscle fatigue in a forward dynamic simulation of recumbent pedaling yields computed

stimulation patterns that enable an individual with SCI to pedal the FES-LCE for longer periods of

time, and at higher work rates, than is possible with current stimulation patterns; and (3) using neural

stimulation patterns computed from a forward dynamic simulation of recumbent pedaling in which

selected muscles of both the upper and lower leg are activated, an individual can pedal the FES-LCE

to obtain a greater cardio-respiratory workout than when only upper leg muscles are stimulated.
2-56 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Development and Evaluation of a Quality of Life Instrument for

Individuals with Adult-Onset Hearing Loss

San Diego State University

School of Speech, Language, and Hearing Sciences

San Diego, CA 92182

carrenjstika@aol.com

http://chhs.sdsu.edu/slhs/stika/research1/

Principal Investigator: Carren J. Stika, PhD

Public Contact: 858/552-1996; Fax: 858/642-0266

Project Number: H133G030191

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $149,980; FY 04 $149,999; FY 05 $149,995

Abstract: This project develops a standardized, psychometrically rigorous quality of life instrument for

individuals with adult-onset hearing loss that is conceptually linked to the full range of functional

domains commonly impacted by hearing loss, and which quantifies respondents’ perceptions of

domain satisfaction and subjective well-being. Further, the quality of life instrument integrates the new

paradigm of disability, whereby environmental, cultural, and personal variables are considered in

relation to the individual’s disability. The enhancement of quality of life has recently been recognized

as the essential purpose of health care and rehabilitation. Research is showing that it is the individual’s

subjective well-being rather than the objective health condition or functional status that determines

treatment-seeking behavior, compliance with treatment, and treatment outcome. Individuals with

hearing loss represent the single largest disability group in the United States, with prevalence rates

rising. Despite the fact that hearing loss often has a profound influence on personal and social adjustment, employment status, and general well-being, few psychological measures currently exist to help

assess these effects or evaluate intervention outcomes.
NIDRR Program Directory FY 2005 - Health and Function 2-57

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

District of Columbia

Black-White Disparities in Stroke Rehabilitation

National Rehabilitation Hospital/Medstar Research Institute

Research Division

102 Irving Street, NW

Washington, DC 20010

Principal Investigator: Gerben DeJong, PhD 202/877-1960

Public Contact: Donal Lauderdale, MSE 202-877-1425

Project Number: H133G050153

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 05 $149,569

Abstract: This project analyzes a large existing dataset for disparities in stroke rehabilitation care and

outcomes among black and white stroke survivors and determines how rehabilitation treatments and

outcomes can be optimized for both groups. Investigators then translate study findings into an actionable quality improvement (QI) plan that rehabilitation centers can use to enhance care for both groups.

Researchers use data on 1063 individuals in the 2 racial groups originally acquired from 6 sites in the

Post-Stroke Rehabilitation Outcomes Project (PSROP). This project used a practice-based evidence

(PBE) method that examined the actual practice of care to identify the practices associated with best

outcomes. PBE studies are observational cohort studies that require researchers to specify carefully the

nature of the rehabilitation treatments and control exhaustively for the patient differences that may

otherwise affect the outcomes. To help generalize the findings of the study, investigators compare

study participants with stroke survivors included in eRehabdata, a national database to which 180

rehabilitation facilities report. The study is a collaboration between the National Rehabilitation Hospital

in Washington, DC and the Institute for Clinical Outcomes Research in Salt Lake City, UT.
2-58 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

The Impact of Cognitive Impairment and Outcomes Following SCI

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road, NW

Atlanta, GA 30309

Principal Investigator: Stephen Macciocchi

Public Contact: 404/350-7553

Project Number: H133G030004

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 03 $149,642; FY 04 $149,920; FY 05 $142,514

Abstract: This project is designed to determine whether moderate to severe neurocognitive impairment secondary to comorbid (brain injury) and/or premorbid cognitive disorders (learning disability/

attention deficit disorder) negatively impacts functional, health, quality of life, and participation outcomes following SCI. Participants are followed (1) to determine the base rate of neurocognitive disorders in persons with SCI and (2) to establish the relative effect premorbid/comorbid neurocognitive

impairment has on functional skills, health status, quality of life outcomes at discharge from inpatient

rehabilitation, and participation outcomes at one year following discharge.
NIDRR Program Directory FY 2005 - Health and Function 2-59

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Muscle Strength, Physical Work Capacity, and Functional Performance

in Individuals with Down Syndrome

University of Illinois/Champaign

College of Applied Life Sciences

108 Huff Hall, 1206 South Fourth Street

Champaign, IL 61820

fernhall@uiuc.edu

Principal Investigator: Bo Fernhall, PhD

Public Contact: 217/333-2131

Project Number: H133G040323

Start Date: October 01, 2004

Length: 24 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $149,984; FY 05 $149,591

Abstract: This project evaluates the minimal muscle strength and endurance thresholds required for

daily functional performance, such as rising from a chair, ascending or descending stairs, the ability to

walk fast enough to cross a street in the time allotted at signaled intersections, and general walk/run

performance. The project also evaluates the effect of resistance training on the ability to perform these

daily tasks and on quality of life in individuals with Down Syndrome. This project is built on the

premise that most individuals with Down Syndrome have low levels of muscle strength which substantially contribute to functional limitations, poor work capacity, and reduced quality of life. Although

many other factors contribute to functional limitations and decreased quality of life in people with

disabilities, muscle strength is a consistent major contributor, and muscle strength can easily be addressed in intervention programs.
2-60 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Three Dimensional Assessment and Rehabilitation of Arm Function

Following Stroke

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1406

Chicago, IL 60611

r-beer@northwestern.edu

Principal Investigator: Randall F. Beer, PhD 312/238-1412

Public Contact: Fax: 312/238-2208

Project Number: H133G030204

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $149,957; FY 04 $149,926; FY 05 $149,884

Abstract: The goal of this project is to develop and evaluate the Multi-Axis Cartesian-based Arm

Rehabilitation Machine (MACARM) - a new device for the quantitative assessment and rehabilitation

of three dimensional arm movements following stroke. As a cost-effective alternative to robotic arm

technology, the MACARM utilizes a geometric arrangement of relatively simple, single degree of

freedom “Active Modules” to achieve a large workspace and high force and positional performance.

The MACARM is founded on the Multipurpose Multiaxial Isokinetic Dynamometer (MMID) originally developed as an exercise system for NASA. The objectives of this project are as follows: (1) to

modify the MMID hardware to achieve the force and positional accuracy required for upper limb

rehabilitation, (2) to develop MACARM software for upper limb assessment and rehabilitation, (3) to

validate the static and dynamic force and positional performance of the MACARM, and (4) to test the

MACARM with human subjects, including stroke survivors.
NIDRR Program Directory FY 2005 - Health and Function 2-61

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Gait Abnormalities in Individuals with Stroke: Implications to

Rehabilitation

Rehabilitation Institute Research Corporation

345 East Superior Street, Suite 1436

Chicago, IL 60611

y-dhaher@northwestern.edu

Principal Investigator: Yasin Y. Dhaher, PhD

Public Contact: 312/238-1408; Fax: 312/238-2208

Project Number: H133G040065

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $149,964; FY 05 $149,981

Abstract: This project assesses hip kinematics using standard motion analysis technology during

overground walking, and kinetics measured during constrained (i.e., sagittal plane restricted) simulated

treadmill walking using an instrumented robotic gait orthosis. These behaviors are compared to static

measures of both volitional and reflex (stretch) measurements at the hip, knee, and ankle joints of the

affected limb. Such measurements are performed in individuals with chronic stroke to identify factors

that contribute to abnormal frontal plane behaviors. In individuals with acute stroke, research characterizes the mechanisms underlying development of abnormal frontal plane kinematics throughout the

natural recovery and rehabilitation processes. Finally, by providing specific gait retraining paradigms at

the initial and chronic stages of injury, the project determines the mutability of abnormal gait kinematics throughout the recovery process.
2-62 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Maryland

Bilateral Arm Training in Patients with Chronic Hemiparesis

University of Maryland

100 Penn Street

Baltimore, MD 21201-1082

jwhitall@som.umaryland.edu

http://pt.umaryland.edu/academic/phd

Principal Investigator: Jill Whitall, PhD

Public Contact: 410/706-0764; Fax: 410/706-6387

Project Number: H133G010111

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 01 $148,579; FY 02 $148,742; FY 03 $150,000; FY 04 $0 (No-cost extension

through 9/30/2005); FY 05 $0 (No-cost extension through 9/30/2006)

Abstract: This project uses a randomized controlled study to test the validity of low intensity repetitive

bilateral arm training with rhythmic auditory cuing to improve upper extremity (UE) motor function.

This training program is based on principles of motor learning and control. A long-term objective of

this research program is to understand the principles and mechanisms underlying UE stroke rehabilitation and to provide a scientific basis for planning treatments for stroke rehabilitation.
NIDRR Program Directory FY 2005 - Health and Function 2-63

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

A Randomized Trial of Realignment Therapy for Treatment of Medial

Knee Osteoarthritis

Boston University

Clinical Epidemiology and Research Training Unit

715 Albany Street, Room A203

Boston, MA 02118

djhunter@bu.edu

Principal Investigator: David J. Hunter, MD, PhD

Public Contact: 617/638-5180; Fax: 617/638-5239

Project Number: H133G040201

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: The overall objective of this project is to determine whether the provision of realignment

therapy in patients with medial knee osteoarthritis (OA) relieves knee pain and improves function. The

project tests the hypothesis that compared to control treatment, the use of realignment therapy (valgus

knee brace + motion control shoes + orthosis) is effective in medial knee OA. The specific aims are:

(1) To undertake a 24 week randomized crossover clinical trial in patients with medial knee osteoarthritis to determine whether provision of realignment therapy leads to lower pain scores and improved

function during the time of this treatment than during the use of a placebo treatment; (2) to perform an

open label follow-up study to track use and effectiveness of treatment. This project is co-funded by

Generation II, a knee bracing company.
2-64 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Psychological and Physiological Aspects of Menopause in Women with

Spinal Cord Injury

University of Michigan

Department of Physical Medicine and Rehabilitation

300 North Ingalls, Room NI2A09

Ann Arbor, MI 48109-0491

Principal Investigator: David R. Gater, MD, PhD

Public Contact: 734/647-5195; Fax: 734/936-5492

Project Number: H133G040274

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $149,924; FY 05 $149,432

Abstract: The overall goal of this project is to test the general hypothesis that SCI will moderate the

relationship of menopause and health-related outcomes. This research involves two interrelated studies

of women with SCI: Study 1 is aimed at examining physical (e.g., secondary conditions), and psychological outcomes (e.g., depression, perceived stress), while Study 2 is aimed at examining physiological outcomes (e.g., body composition, fitness levels). These studies involve a total of 227 women with

SCI, men with SCI, and women without disabilities. Study 1 involves three collaborating centers

(University of Michigan, Craig Hospital, and Santa Clara Valley Medical Center) in the collection of

longitudinal survey data from 207 participants to assess the ability to reliably distinguish secondary

conditions of SCI from menopause symptomatology and experience of menopause symptomatology in

women with SCI (women without disabilities serve as controls). Men with SCI serve as controls in the

first part of this study. Study 2 (University of Michigan only) collects longitudinal data to investigate

physiological outcomes menopause in a total of 20 women.
NIDRR Program Directory FY 2005 - Health and Function 2-65

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Sensorimotor Training and Assessment in Adults with Hemiplegic

Cerebral Palsy: The ULTrA Program

University Michigan

Division of Kinesiology

401 Washtenaw

Ann Arbor, MI 48109-2214

shcb@umich.edu

Principal Investigator: Susan H. Brown, PhD

Public Contact: 734/763-6755; Fax: 734/936-1925

Project Number: H133G050151

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 05 $148,810

Abstract: This project implements a ten-week upper limb training and assessment program (ULTrA.

Program) for adults with hemiplegic cerebral palsy (CP), a growing yet neglected segment of the CP

community. This program is home-based but linked to the research laboratory through the Internet.

Prior to and following clinical intervention, a quantitative assessment of upper limb and hand sensorimotor function is made using established motor control techniques. Each participant receives a

computer-based upper limb training unit, including high speed Internet connectivity and a training

CD. A 40-minute, tailored intervention program is performed six days a week. During three of these

training sessions, a student coach assists participants via webcam. During the coaching sessions,

movement time and grasp force data are recorded and uploaded to a central website which also serves

as a resource for consumers and researchers in the area of mobility in CP across the lifespan. Training

in this intervention leads to improved sensorimotor function of the affected limb and improved bilateral

coordination in adults with hemiplegic CP. This internet-based program, which utilizes virtual coaches,

facilitates adherence to the training program and thus maximizes the benefit of the intervention.
2-66 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Functional Assessment and Treatment of Neurogenic Hypotension Due

to Spinal Cord Injury

Rehabilitation Institute of Michigan

Wayne State University

261 Mack Boulevard, Room 834

Detroit, MI 48201

enieshof@dmc.org

Principal Investigator: Edward Nieshoff, MD

Public Contact: 313/745-9733; 313/745-9735; Fax: 313/745-1063

Project Number: H133G020128

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $116,835; FY 03 $116,118; FY 04 $119,442

Abstract: This project characterizes hypotensive phenomena associated with SCI and evaluates the

effects of midodrine, an alpha-sympathomimetic medication, on them. Specifically, cardiovascular

autonomic insufficiency due to SCI is manifested by (1) orthostatic hypotension, which impedes early

rehabilitation efforts and causes subjective distress, and (2) exertional hypotension, which contributes

to pathological fatigue and limited exercise performance. Thus, two corresponding protocols are

employed to evaluate the effects of anti-hypotensive treatment with midodrine on each impairment,

using two methods of hemodynamic challenge: head-up tilt table testing is used to elicit orthostatic

hypotension, and arm-crank ergometry to elicit exertional hypotension. In each protocol, a randomized

crossover within-subjects design allows for comparison of the effects of three interventions (compression garments, midodrine 10mg, and placebo) on subjective and objective responses. Ability to tolerate

head-up tilt is assessed by heart rate, blood pressure, and symptoms during inclination; exercise tolerance is evaluated by oxygen consumption and perceived exertion in addition to the latter. Similar

cardiovascular autonomic insufficiency in non-paralyzed populations responds dramatically to treatment with the midodrine, with increased ability to engage in physical activity. This project is the first

controlled trial of midodrine in SCI.
NIDRR Program Directory FY 2005 - Health and Function 2-67

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Minnesota

Effect of Electrical Stimulation on Brain Reorganization in Subjects

with Stroke

University of Minnesota

MMC 388

Minneapolis, MN 55455-2070

carey007@umn.edu

Principal Investigator: James R. Carey, PhD

Public Contact: 612/626-2746; Fax: 612/625-7192

Project Number: H133G010077

Start Date: September 01, 2001

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 01 $149,995; FY 02 $149,993; FY 03 $149,985; FY 04 $0 (No-cost extension

through 8/31/2005); FY 05 $0 (No-cost extension through 2/28/2006)

Abstract: This project studies the effects of training finger movement control in subjects with stroke

using a finger movement tracking paradigm on manual skill and also on brain reorganization, as

measured by functional magnetic resonance imaging. Although brain imaging studies show evidence

of brain reorganization in individuals who have recovered from stroke, these studies have not examined the subjects before and after their rehabilitation. Electrical stimulation has been found to be

effective in helping recover hand function in many but not all individuals with stroke. This project

instructs subjects with stroke in aggressive (six hours per day) electrical stimulation treatment to be

done in their own home. Furthermore, it explores whether the sensory bombardment that occurs

centrally with electrical stimulation causes an expansion of cortical activity and whether this might be

the mechanism for improved manual control following treatment. Subjects with stroke are assigned

randomly to either an electrical stimulation group or a control group. Appropriate tests of manual

performance as well as brain imaging using a 4 Tesla magnet are conducted at pretest, post-test, and

follow-up. This research has the potential of uncovering important information on recovery from stroke

that invites many more studies in the future.
2-68 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Minnesota

Home-Based Tracking Training to Stimulate Neuroplasticity and

Improve Function in Stroke

University of Minnesota

MMC 388

Minneapolis, MN 55455-2070

carey007@umn.edu

Principal Investigator: James R. Carey, PhD, PT

Public Contact: 612/626-2746; Fax: 612/625-7192

Project Number: H133G020145

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $149,929; FY 03 $149,989; FY 04 $149,416; FY 05 $0 (No-cost extension

through 7/31/2006)

Abstract: This project examines: (1) whether home-based joint movement tracking training is effective

in promoting improved hand function and brain reorganization in subjects with chronic stroke, and (2)

whether the mechanism of any such improvement is learning-dependent or use-dependent. Recent

research has shown that repetitive efforts by subjects with chronic stroke using their paretic hand at a

finger movement tracking task produced significant improvements in hand function and brain reorganization. The training technique requires patients to learn how to create precision movements of the

index finger to track target waveforms on a computer screen. This project investigates whether homebased tracking treatment using a laptop computer and telecommunication technology can be as effective as earlier work with clinic-based treatment. Equally important, this project determines whether it is

the motor learning or the repetitive movement that serves as the mechanism of improvement.
NIDRR Program Directory FY 2005 - Health and Function 2-69

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Nebraska

Investigation of the Dynamics of Development of Sitting Postural

Control in Infants with Cerebral Palsy

University of Nebraska at Omaha

HPER Biomechanics Lab

6001 Dodge Street

Omaha, NE 68182-0216

nstergiou@mail.unomaha.eduFu:

http://www.unocoe.unomaha.edu/hper/bio/home.htm

Principal Investigator: Nicholas Stergiou, PhD; Wayne A. Stuberg, PhD, PT; Regina T. Harbourne,

PT 402/554-3247

Public Contact: Lisa Holst 402/554-3075; Fax: 402/554-3693

Project Number: H133G040118

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: The overall goal of this research is to understand the mechanisms underlying the development of postural control in sitting using new methodology, in order to provide a scientific basis for

evaluation and treatment of posture and movement disorders in infants with cerebral palsy. The development of early posture control remains poorly understood despite considerable therapeutic effort.

Infants with cerebral palsy show their first delays in the acquisition of sitting, with subsequent problems developing adequate posture and movement control. Identifying the delay, determining the nature

of the problem, and evaluating the effectiveness of treatment quickly, are vital in the early part of an

infant’s life, since this is the time of greatest plasticity. Tools from nonlinear dynamics, which are

increasingly being used to examine other biological rhythms, are used in this study to analyze postural

sway from center of pressure data during the development of sitting postural control.
2-70 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Jersey

Practical Clinical Trial of Cognitive Rehabilitation in Neuralgic Illness

JFK Johnson Rehabilitation Institute

2048 Oak Tree Road

Edison, NJ 08820

kcicerone@solarishs.org

http://www.njrehab.org/tbims

Principal Investigator: Keith D. Cicerone, PhD

Public Contact: 732/906-2640; Fax: 732/906-9241

Project Number: H133G050063

Start Date: November 01, 2005

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $150,000

Abstract: This project conducts a prospective, randomized, practical clinical trial of intensive cognitive rehabilitation for persons with (non-traumatic) neuralgic illness. Neuralgic illness is a common

condition that impacts personal autonomy, social relatedness, and quality of life. Impairments of

cognitive functioning are common after neuralgic illness, and are associated with persistent disability.

The project evaluates the effectiveness of a program of Intensive Cognitive Rehabilitation (ICRP)

compared with a standard rehabilitation program (SRO) for persons with neuralgic illness. Participants

enrolled from clinical and community-based referrals are randomly assigned to receive a 17-week

program of either ICRP or SRO. A broad range of health-related outcome measures are used, including

neuropsychological functioning, community integration and social participation, perceived quality of

life, and patient-centered view of change.
NIDRR Program Directory FY 2005 - Health and Function 2-71

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Randomized Controlled Trial of Anti-Fatiguing Exercise to Improve

Function in Multiple Sclerosis Patients

State University of New York (SUNY) at Buffalo

Department of Rehabilitation Science

515 Kimball Tower

Buffalo, NY 14214

nfisher@buffalo.edu

http://phhp.buffalo.edu/rs/rehabphys

Principal Investigator: Nadine M. Fisher, EdD

Public Contact: 716/829-3141, ext. 145; Fax: 716/829-3217

Project Number: H133G010132

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000; FY 04 $0 (No-cost extension

through 9/30/2005); FY 05 $0 (No-cost extension through 9/30/2006)

Abstract: The goals of this study are: (1) to measure the changes in fatigue that result from a simulated

workday and the next morning (incomplete recovery and residual fatigue); and (2) to study the effectiveness of a 12-week program of anti-fatiguing resistance exercises. Multiple Sclerosis (MS) is a

demyelinating disease of the central nervous system; the most common symptom of MS is a generalized sense of fatigue and reduced function. Few studies have considered the role of exercise as a

treatment for fatigue in people with MS. Subjects with MS are randomly assigned an exercise group

and receive an individualized progressive resistance training program of anti-fatiguing exercises to

perform three days per week in the lab or at home.
2-72 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Impact of Cooling and Exercise on Fatigue in Individuals with Multiple

State University of New York (SUNY) at Buffalo

Department of Rehabilitation Science

515 Kimball Tower

Buffalo, NY 14214

nfisher@buffalo.edu

http://sphhp.buffalo.edu/rs/rehabphys

Principal Investigator: Nadine M. Fisher, EdD

Public Contact: 716/829-3141, ext. 145; Fax: 716/829-3217

Project Number: H133G050198

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $149,999

Abstract: Multiple Sclerosis (MS) is an inflammatory, demyelinating disease of the central nervous

system. The most common symptom of MS is a generalized sense of fatigue. Some distinguishing

features of fatigue in MS are that it comes on easily, prevents sustained physical functioning, interferes

with an individual’s responsibilities and role performance, and is worsened by heat. To manage fatigue, it has been suggested that individuals with MS should participate in aerobic exercise, plan for

rest periods, improve sleep, and avoid heat. The goals of this research study are (1) to assess how work

capacity (exercise) and fatigue are affected by different cooling strategies (Phase I), and (2) to determine the effects of a 12-week aerobic exercise program on heat flux and changes in skin and core

body temperature (Phase II). In Phase I, 60 subjects with mild to moderate MS-related disability are

assessed for physiological changes during four cooling conditions (no cooling, pre-cooling, cooling

during exercise, ad libitum cooling). After completion of Phase I, the subjects are randomly assigned to

exercise without cooling, exercise with cooling, or control groups for Phase II (a 12-week aerobic

cycling exercise program). For Phase II, a baseline maximal graded exercise test to assess cardiovascular function and measures of fatigue and temperature are conducted prior to randomizing the subjects

into the three groups. Positive results of the study will lead to a better understanding of treatment

(cooling) possibilities and exercise rehabilitation procedures available for individuals with MS.
NIDRR Program Directory FY 2005 - Health and Function 2-73

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Ohio

Empowering Persons with a Spinal Cord Injury Through a Shared

Decision-Making Program

Case Western Reserve University

2500 Metrohealth Drive

Cleveland, OH 44109

pkmurray@metrohealth.org

Principal Investigator: Patrick Murray, MD 216/778-3901

Public Contact: Mary Jo Roach, PhD, Project Manager 216/778-8781; Fax: 216/778-3945

Project Number: H133G020029

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 02 $149,759; FY 03 $149,759; FY 04 $149,759; FY 05 $0 (No-cost extension

through 8/31/2006)

Abstract: This project systematically summarizes information concerning the various aspects of

bladder management and SCI and prepares it in a format that allows persons with SCI to make more

informed decisions about this issue. A panel of clinicians, experts in the care of persons with SCI, meet

to develop a table of estimates concerning costs, complications, long-term risks, and effects on other

aspects of care for each of the four commonly used approaches to bladder management and two

emerging technologies. This panel is supported by a team that abstracts relevant literature and assists

with decision analysis, when needed. These clinical estimates are shared with three focus groups of

persons with SCI. The focus groups discuss the clinical findings and add relevant information about

how the clinical aspects integrate with personal, vocational, and preference issues for individuals with

SCI. The investigators use these two sets of information to develop a script for a multimedia presentation tailored to address the specifics of any individual’s clinical situation. The multimedia presentation

is evaluated for its ability to enhance informed decisions among persons with SCI concerning bladder

management.
2-74 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Opening the “Black Box:” The Content and Process of Learning in

Inpatient Traumatic Brain Injury Rehabilitation

Moss Rehabilitation Research Institute

1200 West Tabor Road

Philadelphia, PA 19141

thart@einstein.edu

Principal Investigator: Tessa Hart, PhD

Public Contact: 215/456-6544; Fax: 215/456-5926

Project Number: H133G020052

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $144,312; FY 03 $147,355; FY 04 $140,425; FY 05 $0 (No-cost extension

through 9/30/2006)

Abstract: This project aims to perform a systematic study of the content and process of learning events

and teaching strategies in inpatient TBI rehabilitation, and to develop reliable tools by which they may

be characterized. Much of the content and process of rehabilitation for TBI remains within a “black

box” of unspecified therapy approaches and modalities. This project uses a variety of innovative

strategies to open the “black box,” to collect and analyze data on content and process variables for both

qualitative and quantitative purposes. Following a participatory action research model, the project

utilizes a project team composed of experienced clinicians in the field of TBI rehabilitation. The team

uses converging task analysis methods including group process, interviewing, and field observation to

develop a systematic, hierarchically organized classification of learning events used in inpatient TBI

rehabilitation, and a classification system and operational definitions of key therapist behaviors in the

areas of task setup, task guidance, and task feedback/reinforcement. Particular attention is devoted to

aspects of content and process relevant to errorless learning, on the assumption that this strategy will be

particularly valuable to future research efforts. The team is assisted throughout by distinguished consultants with expertise in TBI and cognitive rehabilitation, errorless learning, and rehabilitation research methodology.
NIDRR Program Directory FY 2005 - Health and Function 2-75

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Naturalistic Action Impairment in Left Hemisphere Stroke: Cognitive

Predictors and Consequences

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

Korman 213, 1200 West Tabor Road

Philadelphia, PA 19141

lbuxbaum@einstein.edu

Principal Investigator: Laurel Buxbaum, PsyD

Public Contact: 215/456-5953; Fax: 215/456-5926

Project Number: H133G030169

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $149,936; FY 04 $149,319; FY 05 $149,966

Abstract: This project: (1) provides a detailed analysis of the cognitive and neuroanatomical predictors

of naturalistic action (NA) performance in well-characterized individuals who have suffered left

hemisphere stroke; (2) clarifies the relationships between left hemisphere apraxia and the performance

of NA; (3) identifies the left hemisphere neuroanatomic structures associated with NA impairment; (4)

improves the construct validity of the Naturalistic Action Test, a published measure of NA developed

by the investigators, by establishing its relationship to tests of apraxia, and extending what is known of

its relationships to measures of attention and executive function; and (5) educates rehabilitation professionals and caregivers about results these research goals. Acquired impairment in activities of daily

living and instrumental activities of daily living such as meal preparation, dressing, and shopping is a

common and persistent consequence of stroke, affecting approximately 50 percent of the nearly four

million Americans living with the effects of stroke. Impairment in these NA activities has important

consequences for caregiver burden and independence, and predicts future risk of failure to return to

work, nursing home admission, and death.
2-76 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Use of Functional Neuroimaging to Assess the Status of the Attention

Networks Following Traumatic Brain Injury

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

1200 West Tabor Road, Korman Suite 213

Philadelphia, PA 19141-3098

Principal Investigator: John Whyte, MD, PhD

Public Contact: 215/456-5924; Fax: 215/456-5926

Project Number: H133G050219

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $149,975

Abstract: Traumatic brain injury (TBI) is a common cause of disability, particularly in young adults.

Survivors of TBI frequently suffer from persistent cognitive impairments that interfere with the rehabilitation process, as well as return to school, work, and community life. Difficulties with attention,

including distractibility, difficulty concentrating, difficulty dividing attention (multi-tasking), and

cognitive fatigue during effortful tasks, are among the most frequent complaints of survivors of TBI

and their caregivers. This project studies the behavioral response and neural network activation patterns associated with performance of three tasks designed to rely heavily on the three distinct attention

networks: vigilance, executive, and orienting. The study compares uninjured control participants to

survivors of severe TBI, with respect to both behavior and brain activation studied with perfusion, and

fast event-related BOLD functional magnetic resonance imaging. The study also compares the performance of TBI survivors on active drug and placebo in two separate pharmacologic probe studies,

using single doses of bromocriptine (a D2 dopaminergic agonist) and nicotine (a nicotinic cholinergic

agonist), predicting different patterns of responses to the two agents.
NIDRR Program Directory FY 2005 - Health and Function 2-77

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

A Study of Biophysical and Microvascular Function of Individuals with

SCI: Implications for Alternating Pressure Support Surfaces

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

Forbes Tower, Suite 5044

Pittsburgh, PA 15260

dbrienza@pitt.edu

Principal Investigator: David M. Brienza, PhD 412/383-6591

Public Contact: Jean Webb 412/383-6586 (V); 412/383-6598 (TTY); Fax: 412/383-6597

Project Number: H133G040222

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $149,246; FY 05 $149,115

Abstract: The specific aims of this research study are to: (1) characterize blood flow control mechanisms (e.g. metabolic, neurogenic, and myogenic controls) via laser Doppler blood flow using Wavelet

analysis in individuals with SCI; (2) investigate the use of alternating pressure for enhancing skin

blood flow in SCI; (3) compare the effect of neurogenic control of cutaneous microcirculation on the

strength of blood flow responses to alternating pressure in SCI with T-6 above and below; and (4)

compare the effect of soft tissue properties on the strength of blood flow responses to alternating

pressure in SCI with T-6 below and unimpaired subjects. These studies provide insight into mechanisms important to the configurations of optimal parameters for enhancing blood flow in SCI population, and provide a valid method for the evaluation of alternating pressure devices.
2-78 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Rhode Island

Project Shake It Up! Health Promotion and Capacity Building for

Persons with Traumatic Spinal Cord Injury and other Neuromuscular

Disabilities

Brown University

Center for Alcohol and Addiction Studies

Box G-BH

Providence, RI 02912

sarah_everhart@brown.edu

Principal Investigator: Pamela Block, PhD; Sarah Everhart Skeels, MPH 401/444-1876

Public Contact: 401/444-1876; Fax: 401/444-1881

Project Number: H133G010094

Start Date: January 01, 2002

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $149,783; FY 02 $148,927; FY 03 $149,939; FY 04 $0 (No-cost extension

through 12/31/2005)

Abstract: Project Shake It Up promotes health and capacity building for people with SCI and other

neuromuscular disabilities through physical activity, recreation, improving independent living skills,

developing peer support networks and promoting self-advocacy. Project Shake It Up also builds the

capacity of two local nonprofit organizations controlled and staffed primarily by individuals with

disabilities: Shake-A-Leg, Inc., whose focus is rehabilitation and recreation, and PARI, a center for

independent living. Project objectives include: (1) developing a culturally competent training and

recreation program, including a manual that addresses independent living issues such as disability

rights, self-advocacy, education, employment, transportation, sexuality, alcohol and substance use, and

health promotion; (2) implementing and evaluating the Shake It Up program for health promotion,

physical activity, and alcohol and substance use reduction; (3) establishing peer-support networks to

provide long-term support for intervention participants; (4) increasing the capacity of Shake-A-Leg and

PARI to promote alcohol and substance use reduction through health promotion and empowerment;

and (5) disseminating the program nationwide by making the manual for the Shake It Up model widely

available.
NIDRR Program Directory FY 2005 - Health and Function 2-79

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

Aging After Spinal Cord Injury: Three Decades of Longitudinal

Research

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences; Research Office

19 Hagood Ave, Suite 910; PO Box 250822

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-1107

Project Number: H133G020239

Start Date: September 01, 2001

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 02 $149,858; FY 03 $149,998; FY 04 $0 (No-cost extension through 12/31/

2005)

Abstract: This study performs a sixth data collection in the ongoing Minnesota longitudinal study in

order to identify how the life situation of people with SCI has changed over the past three decades,

with an emphasis on evaluating the roles of aging and environmental change. This study has used a

revolving prospective panel design that follows participants longitudinally over time, adding new

samples at different times to counteract attrition. The study was initiated in 1973, with three subsequent

follow-ups carried out over a 25-year period (1984, 1988, 1993, and 1998). A Southeastern sample

was added in 1993 to add a more diverse participant sample with a larger portion of women and

minorities. The 699 respondents from the 25-year follow-up and a new sample of 500 individuals with

SCI are asked to complete materials. This sixth study stage is the most extensive follow-up yet performed, with the addition of several new measures that include: (1) portions of the Behavioral Risk

Factor Surveillance System (BRFSS); (2) expanded assessment of employment history; (3) a measure

of depression that was specially designed to avoid items that are confounded with health conditions

(the Older Adult Health and Mood Questionnaire); and (4) a standardized measure of environment, the

Craig Hospital Inventory of Environmental Factors. This study also has the added benefit of greater

consumer involvement at each step of the study. Results of the study enhance both rehabilitation

professionals’ and consumers’ understanding of the consequences of aging with SCI and lay the

foundation for future interventions.
2-80 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

Risk for Early Mortality After Spinal Cord Injury

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

Research Office

19 Hagood Ave, Suite 910

PO Box 250822

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-1107

Project Number: H133G030117

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 03 $149,984; FY 04 $149,996; FY 05 $149,964

Abstract: This project identifies the relationships of life adjustment, quality of-life, activities, fitness,

and secondary conditions with length of survival and causes of death after SCI. Two studies utilize

distinct prospective data sets. The data for study 1 was collected from 362 participants in 1990/1991,

whereas the data for study 2 was collected from 597 participants in 1995/1996. Similar, but not identical, measures were obtained from each of the two study samples. Current mortality status is identified

using the National Death Index and the Master Beneficiary Record and Summary Earnings files from

the Social Security Administration. The most basic biographic and injury related variables are entered

as a block first as statistical controls. The general life adjustment and health variables and the more

specific secondary conditions variables, none of which have been the focus of previous studies, are

investigated in more detail in relation to mortality, as they hold the greatest promise for intervention.
NIDRR Program Directory FY 2005 - Health and Function 2-81

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

A Longitudinal Study of Risk for Hospitalization, Pressure Ulcers, and

Subsequent Injuries After Spinal Cord Injury

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

Research Office

19 Hagood Ave, Suite 910

PO Box 250822

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-1107

Project Number: H133G050165

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 05 $149,992

Abstract: The onset of spinal cord injury (SCI) increases the risk for the development of a number of

secondary conditions that may adversely impact an individual’s life and even result in early mortality.

The purpose of this project is to perform a longitudinal study to identify protective and risk factors

associated with the onset of multiple types of adverse health events among a large sample of individuals with SCI. In 1997-8, prospective data was collected on 1,391 participants who included a substantial number of women (n = 362) and racial/ethnic minorities (n = 359). Risk and protective predictors

were selected based on a general empirical risk model. Predictor variables were first measured over a

10-month period in 1997-1998, including: (a) biographical status, (b) injury status, (c) psychological

status, (d) environmental factors, and (e) health behaviors. Several health outcomes measures were also

used. During this follow-up study, the project administers several new predictor measures along with

multiple outcome measures, several of which were also administered during the previous study. These

measures focus on adverse health events including hospitalizations, onset of pressure ulcers, subsequent injuries, and the onset of probable major depression. The project includes structural equation

modeling to develop risk models for each outcome. A consumer advisory committee meets bi-annually

to make recommendations regarding all components of the project. The ultimate study goal is to

enhance the lives of people with SCI by identifying the risk and protective factors associated with

adverse health events to serve as a foundation for prevention efforts by rehabilitation and public health

professionals. This directly empowers consumers to improve their own health by being provided with

concrete information and recommendations to promote better health and avoid preventable secondary

health complications.
2-82 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Tennessee

The Relationship Of Minimal Sensorineural Hearing Loss (MSHL) to

Psycho-educational Development

Vanderbilt University Medical Center

1215 21st Avenue South

Medical Center East, South Tower, Suite 6308

Nashville, TN 37232

fred.h.bess@vanderbilt.edu

http://www.vbwc.com

Principal Investigator: Fred H. Bess, PhD

Public Contact: 615/936-5001; Fax: 615/936-5014

Project Number: H133G050211

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 05 $150,000

Abstract: The objectives of this study are to identify young school-aged children with minimal sensorineural hearing loss (MSHL) and to assess the relationship of MSHL to psycho-educational development. MSHL is defined for three distinct populations of children: (1) children with unilateral sensorineural hearing loss, (2) children with bilateral minimal sensorineural hearing loss with thresholds

averaging 20-40 dB, and (3) children with high frequency sensorineural hearing loss above 2000. The

project identifies young children with MSHL and their counterparts with normal hearing matched for

age, sex, gender, and SES controls in kindergarten, first, and second grade. The educational and

functional status of these two groups is then compared. During a two-year period, approximately 300

children undergo a series of evaluations at least one year apart. The results from this project disclose

new information concerning the psycho-educational problems experienced by young children with

MSHL. In addition, the longitudinal data from this project provides new knowledge about the developmental trajectory of children with MSHL. Moreover, the data provided by this research allows for the

development of a profile specifying the characteristics of young children with MSHL who are at

significant risk of developing later academic and functional deficits. Finally, findings from this study

facilitate the development of effective identification and intervention strategies for this population of

children.
NIDRR Program Directory FY 2005 - Health and Function 2-83

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Cost Effectiveness Of Rehabilitation Following Traumatic Brain Injury

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

1333 Moursund Avenue

Houston, TX 77030-3498

whigh@bcm.tmc.edu

http://www.braininjuryresearch.org

Principal Investigator: Walter M. High Jr., PhD

Public Contact: 713/383-5643; Fax: 713/668-5210

Project Number: H133G030144

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: This project researches the effectiveness of rehabilitation on two new cohorts of persons

with TBI who have either received or not received comprehensive inpatient rehabilitation. At one year

post injury, costs for services the persons with TBI are likely to receive and vocational losses are

calculated and adjusted for demographic, socioeconomic, and neurological variables. The differences

between the costs and vocational losses between the two groups are then compared to the actual

reimbursements for comprehensive inpatient rehabilitation services.
2-84 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Washington

Efficacy of Pressure Garment Therapy After Burns

University of Washington

Harborview Medical Center, Box 359796

325 Ninth Avenue

Seattle, WA 98104

engrav@u.eashington.edu

Principal Investigator: Loren H. Engrav, MD

Public Contact: 206/731-3143

Project Number: H133G050022

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 05 $150,000

Abstract: This project conducts a randomized, controlled trial to determine the efficacy of custom-fit

pressure garment therapy in the prevention of hypertrophic scarring in healed burns so that the garments may be prescribed based upon sound data or discontinue their use in bum care. Hypertrophic

scarring is one of the most devastating outcomes following burn injury. Pressure garments are the

common therapy to minimize these effects. However, these garments are unattractive, expensive, and

uncomfortable, and their use needs to be validated by rigorous research. The objective of this project is

to determine the efficacy of this therapy in the prevention of hypertrophic scarring in healed burns so

that prescription of them may be based upon sound data or discontinue their use.
NIDRR Program Directory FY 2005 - Health and Function 2-85

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Enhanced Upper Limb Motor Control by Reduced Synergistic Muscle

Patterns and Spasticity After Chemodenervation

Medical College of Wisconsin

Physical Medicine and Rehabilitation

8701 Watertown Plank Road

Box 26509

Milwaukee, WI 53226

jmcguire@mail.mcw.edu

Principal Investigator: John McGuire, MD

Public Contact: 414/805-7355

Project Number: H133G020112

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 02 $149,995; FY 03 $149,995; FY 04 $149,991; FY 05 $0 (No-cost extension

through 8/31/2006)

Abstract: This research project assesses the impact of chemodenervation treatment on motor control in

patients with spastic hemiparesis. Moreover, the project examines the neurophysiological mechanisms

of improved motor control following chemodenervation treatment by utilizing state-of-the-art biomechanical analyses of motor abilities in combination with clinical measurements and consumer feedback

related to patients with functional limitations attributed to spasticity. The study identifies changes in

spasticity, limb synergy, and functional reaching tasks using clinical and biomechanical measurements.

This project aims to improve chemodenervation techniques through the knowledge imparted by the

research.
2-86 NIDRR Program Directory FY 2005 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Fracture Risk Prediction in Children and Adults with Osteogenesis

Imperfecta (OI)

Marquette University

Orthopaedic and Rehabilitation Engineering Center

P.O. Box 1881

Milwaukee, WI 53201-1881

gerald.harris@marquette.edu

http://www.orec.org

http://www.marquette.edu

Principal Investigator: Gerald F. Harris, PhD, PE 414/288-0698

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133G050201

Start Date: November 01, 2005

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 05 $150,000

Abstract: This project develops an accurate biomechanical model of the lower extremities to better

understand, predict, and ultimately rehabilitate and better control fracture occurrence in children and

adults with Osteogenesis Imperfecta (OI). State-of-the-art technologies including nanoindentation, 3-D

gait analysis, and finite element analysis are employed in the development process, in addition to an

array of clinical assessment tools. A primary design goal includes model flexibility for more universal

yet specific application in children and young adults with OI. This work uses the novel technology of

nanoindentation to better characterize the structural properties of OI bone in children and young adults.

For this parallel portion of the work, bone samples are gathered during routine reparative surgery from

thirty-four individuals (children and young adults) with OI who have experienced fractures. The bone

is then analyzed to determine strength, stiffness, modulus, and brittleness/ductility at the trabecular

level. Results are compared to current published studies and used to significantly enhance the existing

data. This project constructs a finite element model of the lower extremities. In addition to published

material property data, input for the model comes from 3-D quantitative gait studies (for constraints and

boundary conditions) and the parallel nanoindentation studies (for material property data). The resulting model accurately reflects the structural anatomy, mechanical properties, and loads on the long

bones of the lower extremities. The model is flexible and specifically fit to the study participants’ bony

geometry on the basis of radiographs. During the course of the study, the model boundary conditions

will be altered to explore the influence of factors such as bone size, geometry (bowing), bone structure,

and functional loading on the development of fractures. A comparison of model parameters to clinical

assessment results provides critical insight with regard to fracture development, therapeutic intervention, and longer-term outcomes.
NIDRR Program Directory FY 2005 - Health and Function 2-87

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Delaware

A Low Cost, High Resolution Pressure Mapping System for the

Prevention of Pressure Ulcers

EM Photonics Incorporated

102 East Main Street, Suite 204

Newark, DE 19711

behrmann@emphotonics.com

Principal Investigator: Gregory P. Behrmann

Public Contact: 302/456-9003; Fax: 302/456-9004

Project Number: H133S040134

Start Date: October 01, 2004

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 04 $249,928; FY 05 $249,197

Abstract: Pressure ulcers are a serious medical problem with annual treatment costs over $1 billion

dollars. While the exact etiology involves a complex combination of factors, it is generally accepted

that prolonged pressure to soft tissues results in discrete areas of acute ischemia. If the pressure is not

relieved and the blood supply restored in a critical length of time, endothelial cell damage will result

and eventually necrosis will occur. While it is a common and serious condition for individuals who are

confined to beds or wheelchairs the occurrence of pressure sores can be drastically reduced by frequent

changes in one’s body position. As a result, a number of companies have developed pressure-mapping

systems to provide caregivers, patients and researchers important feedback regarding physical position

history. This project builds upon previous research to develop a novel optically based pressure mapping system and compare its performance to existing systems in clinical settings. The design, based on

mature optical technology, has the physical characteristics of a thin sheet of flexible plastic. Given its

sensitivity to pressure, this technology can be adapted for medical device applications. If successful,

these disposable sensor sheets can be inexpensively applied to large areas, unobtrusively conform to

any surface with minimal alteration of the tissue interface, and provide high resolution pressure maps.
2-88 NIDRR Program Directory FY 2005 - Health and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Oregon

An Innovative Dialysis Regeneration Cartridge for Portable

Hemodialysis

Chemica Technologies, Incorporated

325 Southwest Cyber Drive

Bend, OR 97702-1076

taku@chemica.com

http://www.chemica.com

Principal Investigator: Takuji Tsukamoto, PhD

Public Contact: 541/385-0355; Fax: 541/385-0390

Project Number: H133S030019

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $275,219; FY 04 $224,627; FY 05 $0 (No-cost extension through 12/31/

2005)

Abstract: This project realizes the development of a light-weight and efficient portable hemodialyzer

for children and adults suffering from end stage renal disease (ESRD); greatly improving their quality

of life by facilitation hemdailysis in any location. Many ESRD patients and their families are severely

limited in their mobility and freedom of life due to the time and effort involved in receiving life-sustaining hemodialysis treatment several times a week at clinics or hospitals. This disabling burden on

patients and their families could be significantly lessened if patients had the option of receiving treatment “on the spot,” whether at work, school or home, using a portable hemodialyzer. The overall

objective of this project is to develop an innovative portable hemodialyzer based on a highly efficient

dialysis regeneration cartridge (DRC). The technical objectives for this phase of research are: (1) to

perform scale-up production of the DRC and to construct the full-scale DRC, (2) to test the

biocompatibility and stability of the DRC, (3) to construct a prototype portable hemodialyzer that

contains the DRC and test in vitro, (4) to construct a mini-DRC and test its efficacy and quality in vivo

using animal models, and (5) to summarize Phase II work and evaluate the process.
Technology for Access and Function

NIDRR supports technology-related research at both individual and systems levels.

At the individual level, assistive technology is used to enhance the physical, sensory,

and cognitive abilities of people with disabilities and to assist them to participate in

and function more independently in the home, at work, in recreational settings, and

at cultural and religious events. At the systems level, technology research and

development activities are applied in ways that enhance community integration,

independence, productivity, competitiveness and equal opportunity by mitigating or

eliminating barriers found in large social systems such as public transportation,

telecommunications, information technology, and the built environment.

Contents

Rehabilitation Engineering Research Centers (RERCs) ........................................... 1

Disability and Rehabilitation Research Projects ......................................................24

Field Initiated Projects (FIPs) ..................................................................................36

Small Business Innovative Research (SBIR), Phase I ............................................71

Small Business Innovative Research (SBIR), Phase II ...........................................92

NIDRR Program Directory FY 2005 - Technology for Access and Function 3-1

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

California

RERC on Spinal Cord Injury: Keep Moving: Technologies to Enhance

Mobility and Function for Individuals with Spinal Cord Injury

Los Amigos Research and Education Institute, Inc. (LAREI)

P.O. Box 3500

Downey, CA 90242

sam@ranchorep.org; rwaters@dhs.co.la.ca.us

http://www.larei.org

Principal Investigator: Samuel Landsburger, ScD; Robert Waters, MD 562/401-7994; 562/401-7161

Public Contact: Julia LaPlount 562/401-8111; Fax: 562/803-5569

Project Number: H133E020732

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $899,974; FY 03 $899,932; FY 04 $899,882; FY 05 $899,961

Abstract: This RERC improves the lives of individuals with SCI by promoting their health, safety,

independence, and active engagement in daily activities. Activities include: (1) monitoring trends and

evolving product concepts that represent future directions for technologies in SCI, (2) conducting

research to advance the state of knowledge, (3) disseminating the information to the population, (4)

developing and testing prototype devices that are useful and effective and transferring them to the

marketplace, (5) advancing employment opportunities for individuals with SCI, and (6) developing

ways to expand research capacity in the field of SCI. The R&D program is focused on a key issue for

individuals with SCI, the need to maintain mobility for as long as possible in order to enhance independent function. A survey of the user population determines where areas of greatest need exist. An active

Mobile Arm Support for adults allows those with limited arm function greater independence. The

shoulder-preserving wheelchair, gait training robotic assist device, and adaptive exercise equipment are

all specifically geared to preserve or enhance mobility in individuals with SCI. A project on optimized

wheelchair suspension keeps people mobile by increasing comfort and reducing tissue loading.
3-2 NIDRR Program Directory FY 2005 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Colorado

Rehabilitation Engineering Research Center on Cognitive Technologies

University of Colorado

Health Sciences Center

1245 East Colfax, Suite 200

Denver, CO 80218

cathy.bodine@uchsc.edu

Principal Investigator: Cathy Bodine

Public Contact: 303/315-1281; Fax: 303/837-1208

Project Number: H133E040019

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $850,000; FY 05 $850,000

Abstract: The goal of this RERC is to research, develop, evaluate, implement, and disseminate

innovative technologies and approaches that will have a positive impact on the way in which individuals with significant cognitive disabilities function within their communities and workplace. The Center

incorporates: (1) a consumer-driven model for identifying the most significant barriers to independent

living and workforce; (2) an approach that is balanced and uses both well-established and newly

emerging technologies in its development projects; (3) a focus both on functional limitations and

specific disabilities; and (4) mutually beneficial partnerships with private industry and public agencies.

Research activities include: Needs, knowledge, barriers, and uses of AT by persons with cognitive

disabilities; technology for remote family support for people with cognitive disabilities; influences on

AT use, non-use, and partial, and inappropriate use by persons with traumatic brain injury; AT enhancement of written expression for children and adults; needs assessment for creating affordable,

context-aware technologies; and technology to promote decision-making skills and self-determination

for students with cognitive disabilities. Development activities include: Design, implementation, and

deployment of context aware technologies for persons with cognitive disabilities residing in community living environments; development of HealthQuest, an Internet-based product that enables individuals with intellectual disabilities to become active participants in their own health care; XML

repository of common tasks; batteryless micropower sensors for context aware technologies; perceptive

animated interfaces for workforce training; and environmentally appropriate behavioral cues
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-3

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

District of Columbia

Rehabilitation Engineering Research Center on Hearing Enhancement

Gallaudet University

Division of Audiology and Speech-Language Pathology

800 Florida Avenue, NE

Washington, DC 20002

matthew.bakke@gallaudet.edu

http://www.hearingresearch.org

Principal Investigator: Matthew H. Bakke, PhD

Public Contact: 202/651-5335 (V/TTY); Fax: 202/651-5324

Project Number: H133E030006

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $949,999; FY 04 $949,024; FY 05 $949,480

Abstract: The mission of this RERC is to build and test components of a new, innovative model of

aural rehabilitation tools, services, and training, in order to improve assessment and fitting of hearing

technologies and to increase the availability, knowledge, and use of hearing enhancement devices and

services. Component A: (1) develops and evaluates new methods for field evaluation and fitting of

hearing aids; (2) develops and evaluates techniques to enhance auditory self-monitoring; and (3)

develops methods for predicting the speech-to-interference ratio and intelligibility of speech for a

hearing aid when used with a wireless telephone. Component B conducts a needs assessment survey

of people who use hearing technologies and evaluates the use of Bluetooth technology as a means of

improving and expanding wireless connection to a hearing aid. Component C investigates environmental factors affecting children’s speech recognition abilities in classroom settings. Component D

investigates the use of distortion product otoacoustic emission and reflectance for diagnosis of hearing

loss and tinnitus; and creates and standardizes sets of synthesized nonsense syllables for use in hearing

aid research. Component E develops a new, innovative model for the delivery of aural rehabilitation

services to adults with hearing loss. In addition the RERC conducts a program of training and dissemination that will reach a diverse audience of people, both consumers and professionals.
3-4 NIDRR Program Directory FY 2005 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Florida

Rehabilitation Engineering Research Center on Technology for

Successful Aging

University of Florida

101 South Newell Drive, Suite 2101

Gainesville, FL 32611

wmann@hp.ufl.edu

http://www.rerc.ufl.edu

Principal Investigator: William C. Mann, PhD 352/392-2617

Public Contact: Nate Pendell, Center Coordinator 352/273-6817 (V/TTY); Fax: 352/273-6042

Project Number: H133E010106

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 01 $900,000; FY 02 $900,000; FY 03 $899,999; FY 04 $900,000; FY 05

$899,999

Abstract: The RERC-Tech-Aging conducts research, development, education, and information

dissemination work on technology for successful aging. Projects of the RERC focus on the closely

related areas of communications, home monitoring, and “smart” technologies. The technology driving

the focus for this RERC is developing rapidly and requires an understanding of current and emerging

technology areas, including wireless technology, computers, sensors, user interfaces, control devices,

and networking. Successful integration of this technology into products and systems for older persons

requires an understanding of their complex health, independence, and quality-of-life issues. The

RERC-Tech-Aging tests currently available home monitoring products and demonstrates their effectiveness in relation to independence, quality of life, and health related costs. The RERC-Tech-Aging

also identifies needs and barriers to home monitoring and communication technology, and addresses

needs of special populations including rural-living, elders, and people aging with disability. The

RERC-Tech-Aging brings together national expertise to meet this challenge, including major universities, industry leaders working in this area, major aging or aging-related organizations, major federal

agencies that relate to funding or services in this area, other NIDRR-funded RERCs and RRTCs, and

service-related organizations that assist in identifying study participants.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-5

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Mobile Wireless

Technologies for Persons with Disabilities

Georgia Centers for Advanced Telecommunications Technology

Georgia Institute of Technology

250 - 14th Street NW

Atlanta, GA 30318

rerc@gcatt.gatech.edu

http://www.wirelessrerc.org

Principal Investigator: Helena Mitchell, PhD; Michael Jones, PhD (Shepherd Center); John Peifer

(Georgia Tech) 404/894-0058 (Mitchell); 404/350-7595 (Jones); 404/894-7028 (Peifer)

Public Contact: Sonja Mathis 404/894-8297; Fax: 404/894-1445

Project Number: H133E010804

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 01 $1,000,000; FY 02 $1,000,000; FY 03 $1,000,000; FY 04 $1,000,000; FY

05 $1,000,000

Abstract: This RERC develops appropriate and effective applications of wireless technologies that

enhance the independence of people with disabilities. With an overall goal of promoting independence

and autonomy of people with disabilities, the RERC has two primary aims: (1) ensure equitable access

to mobile wireless products and services by people with disabilities of all ages and abilities; and (2)

investigate promising applications of mobile wireless technologies in support of employment, independent living, and community integration of people with disabilities. To accomplish these aims, the

RERC is organized into three main sections: (1) the Research Section investigates needs, policies, and

promising applications of mobile wireless technologies to promote independence. Research initiatives

include assessment of user needs, evaluation of emerging technologies, and policy initiatives that

influence the practices, policies, and regulations that affect accessibility of wireless technologies, (2)

the Development Section includes projects that address universal access, investigation of new applications of wireless technologies, and innovative design solutions to support independent living of people

with disabilities, (3) the Training and Dissemination Section promotes the synthesis of new knowledge

into practice.
3-6 NIDRR Program Directory FY 2005 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Workplace

Accommodations

Georgia Institute of Technology

Center for Assistive Technology & Environmental Access

490 10th Street, NW

Atlanta, GA 30318

workrerc@catea.org

http://www.workrerc.org

Principal Investigator: Karen Milchus; Jon Sanford 404/894-0393

Public Contact: Karen Milchus 800/726-9119 404/894-1414; Fax: 404/894-9320

Project Number: H133E020720

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 02 $899,997; FY 03 $900,000; FY 04 $899,999; FY 05 $899,999

Abstract: This RERC identifies, designs, and develops devices and systems to enhance the workplace

productivity of people with disabilities. Universal design is a primary focus of the Center: making the

design of products and environments usable by all workers to the greatest extent possible, without the

need for adaptation or specialized design. The RERC’s research projects evaluate existing workplace

products and services and determine areas where further product development is needed. The Center

also studies archival materials to identify factors that contribute to successful or unsuccessful outcomes,

and analyzes policies and practices that may influence the nature and availability of workplace accommodations for persons with disabilities. The RERC’s development activities focus on Remote Services

and Universal Design in the Workplace. The Remote Services projects investigate ways that remote

technologies such as videoconferencing and telework can be used to facilitate employment and provide

technical support services to people with disabilities. The Universal Design projects work with manufacturers to develop new generations of universally designed and accessible products. Digital human

modeling tools developed by the project provide visualizations of products or systems with human

interaction and movement and reduce the need for preliminary physical prototypes. Products are

developed for workers in office, manufacturing, retail/sales, service industry, and other environments.

Finally, training, technical assistance, and dissemination activities on workplace accommodations and

universal design promote the transfer of new knowledge into practice.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-7

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Wheeled Mobility

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

randy.bernard@arch.gatech.edu

http://mobilityrerc.catea.org/

Principal Investigator: Stephen H. Sprigle, PhD; Randy Bernard 404/385-4302 (Sprigle); 404/385-

4691 (Bernard)

Public Contact: Randy Bernard 404/385-4691; Fax: 404/894-9320

Project Number: H133E030035

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,988; FY 04 $949,951; FY 05 $949,975

Abstract: The goal of this RERC is to undertake a major shift in the way wheeled mobility is conceptualized and understood, from the design of assistive devices that enable some individuals to perform

some activities, to the design of a broad range of interventions that enable as many individuals as

possible to actively engage and participate in everyday community life. Research activities include: (1)

User Needs and Design Input uses participatory focus groups to identify needs of wheelchair users; (2)

User Needs of Older Adults assesses the needs of older adults living at home and in other residential

settings; (3) Effects of Environment and Mobility Technology on Participation and Activity measures

the influences of environmental barriers and specialized wheelchair technology on participation and

activity in everyday life; (4) Efficacy of Animation and Visualization Training uses computer simulation techniques to investigate their efficacy in improving mobility training; and (5) Clinical and Functional Implications of Seating Standards and Guidelines studies the relationship between standardized

measures of cushion performance and actual impact on wheelchair users. Development efforts include:

(1) development and marketing of new mobility devices in collaboration with industry design partners;

(2) development of a wheelchair for frail elders that can be used in any residential environment; (3)

interventions to overcome barriers to participation including guidelines and technologies to help

wheelchair users overcome environmental and technological barriers; (4) development of animation

and visualization training through computer simulations to improve training in transfers and outdoor

mobility; and (5) development of valid wheelchair cushion test methods which enables clinicians to

prescribe appropriate wheelchair cushions based on positioning and load distribution.
3-8 NIDRR Program Directory FY 2005 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Recreational

Technologies and Exercise Physiology Benefiting Persons with

Disabilities (RERC RecTech)

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Suite 712

Chicago, IL 60608-6904

jrimmer@uic.edu

http://www.rercrectech.org

Principal Investigator: James H. Rimmer, PhD

Public Contact: 312/413-9651; Fax: 312/355-4058

Project Number: H133E020715

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 02 $899,536; FY 03 $899,725; FY 04 $899,942; FY 05 $899,756

Abstract: This program researches access to recreational opportunities and physical endurance of

people with disabilities, targeting four primary areas: (1) increased access to fitness and recreation

environments; (2) interventions to increase physical activity and recreation participation; (3) adherence

strategies to reduce physical activity relapse and dropout rates; and (4) randomized clinical trials to

evaluate improvements in health and function. Research and development projects include: (1) a

comprehensive needs assessment that involves ongoing assessment of consumer needs as they pertain

to existing and emerging recreational and fitness technologies; (2) research on the use of information

technology and a newly designed environmental accessibility instrument for facilitating access to

recreational and fitness environments and promoting improved health and function; (3) research on the

use of “teleexercise” technology for promoting participation and for monitoring intensity and physiological/psychological outcomes of home-based exercise programs; (4) development of broadly

applicable aftermarket accessory kits for adapting existing cardiovascular exercise equipment for use

by people with disabilities and determining the efficacy of the new adaptations in improving fitness; (5)

development of technology to allow users adaptive control of exercise machines; and (6) development

of an online RecTech solutions database of currently available recreational and fitness technologies to

make available solutions more accessible to consumers. Two training projects promote capacity building for future recreation, fitness, exercise physiology, engineering, and rehabilitation professionals, and

two additional training projects support professional development.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-9

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

RERC on Rehabilitation Robotics and Telemanipulation: Machines

Assisting Recovery from Stroke (MARS)

Rehabilitation Institute Research Corporation

Sensory Motor Performance Program (SMPP) and the Department of Physical Medicine and

Rehabilitation at Northwestern University

345 East Superior Street, Room 1406

Chicago, IL 60611-4496

medevitt@ric.org

http://www.smpp.northwestern.edu/MARS/mars.html

Principal Investigator: W. Zev Rymer, MD, PhD

Public Contact: Mary-Ellen Devitt, MPP 312/238-2910; Fax: 312/908-2208

Project Number: H133E020724

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 02 $805,453; FY 03 $874,845; FY 04 $896,518; FY 05 $888,042

Abstract: MARS-RERC focuses its research and development on restoring function in hemispheric

stroke survivors. Five projects assess different approaches that have the potential to improve performance of the upper extremity, and one project attempts to restore gait and fluid locomotion to the lower

extremities. These projects include: ARM Guide, robotic therapy for force training of the upper extremity in chronic hemiparetic stroke; Lokoma, gait restoration in hemiparetic stroke patients using

goal-directed, robotic-assisted treadmill training; Augmented Reality Robotic Rehab, development of a

robotic system with an augmented reality interface for rehabilitation of brain-injured individuals;

Robotic Assisted Finger Extension, rehabilitation of finger extension in chronic hemiplegia; and Java

Therapy, a home-based telerehabilitation system for improving functional hand and arm movement

recovery following stroke. In addition to these projects, MARS-RERC is training undergraduate

engineering students, medical students, physician residents, graduate students in engineering and

neuroscience, and allied health clinicians, including physical and occupational therapists in the area

rehabilitation robotics. The broad intent of MARS-RERC is to develop robotic devices or machines

that assist the therapist in providing treatments that are rationally based, intensive, and long in duration.

This project is a collaboration of the Rehabilitation Institute of Chicago (RIC), the Catholic University

of America (CUA) and National Rehabilitation Hospital in Washington, D.C., the University of

Illinois at Chicago (UIC), and the University of California at Irvine (UCI).
3-10 NIDRR Program Directory FY 2005 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center in Prosthetics and

Orthotics

Northwestern University

Feinberg School of Medicine

345 East Superior Street, Room 1441

Chicago, IL 60611

reiu@northwestern.edu; d-childress@northwestern.edu; sgard@northwestern.edu

http://www.medschool.northwestern.edu/depts/repoc/

Principal Investigator: Steven A. Gard, PhD; Dudley S. Childress, PhD; 312/238-6500

Public Contact: Resource Unit Help Line 312/238-6524 (V); 312/238-6530 (TTY); Fax: 312/238-

6510

Project Number: H133E030030

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,998; FY 04 $950,000; FY 05 $949,999

Abstract: This Center conducts ten research projects, three of which are pilot studies. In the area of

human locomotion the objectives are to conduct quantitative studies that include non-disabled gait,

modeling of gait, roll-over shape influence on transtibial amputee gait, gait initiation, shock absorption

studies, the role of the spine in walking, transfemoral socket design studies, and evaluation of stancecontrol orthotic knee joints. Pilot studies, where preliminary data is not available, are proposed on

partial foot prothesis/orthosis systems, on evaluation of Ankle Foot Orthoses and on the design of a

Shape & Roll foot for children. Six developmental projects include a simple gait monitoring instrument

(Direct Ultrasound Ranging System), a new prosthetic ankle joint that adapts to inclines, and a manual

through which individuals in low-income countries can make their own artificial feet. In addition, two

upper-limb prosthetics development projects are proposed that deal with reaching, manipulation, and

grasping. Finally, an outcomes measurement tool is developed for prosthetics and orthotics (P&O)

facilities in their reporting to the American Board of Certification. The vision for this RERC is to

improve the quality of life for persons who use prostheses and orthoses through creative applications of

science and engineering to the P&O field. The goal is to uncover new knowledge and understanding

in P&O and to bring more quantification to the field, which will enable them to develop new concepts

and devices to improve the quality, cost-effectiveness, and delivery of P&O fittings.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-11

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Technology Access for

Landmine Survivors

Center for International Rehabilitation

211 E. Ontario St Suite 300

Chicago, IL 60611

kreisinger@cirnetwork.org

http://www.cirnetwork.org

Principal Investigator: Yeongchi Wu, MD

Public Contact: Maggie Coleman, Communications Officer 312/229-1359 ext. 248; Fax: 312/229-

1370

Project Number: H133E030017

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 03 $950,000; FY 04 $950,000; FY 05 $950,000;

Abstract: The Center strives to improve the quality and availability of amputee and rehabilitation

services for landmine survivors by focusing on the development of “appropriate technology”, i.e.

technology that is most suitable to the limited technical and human resources available in most mineaffected regions through the application of research methodologies, the development of mobility aids,

and the creation of educational materials, all of which are designed specifically for mine-affected

populations and disseminated through a network of rehabilitation service providers in mine-affected

regions. Laboratory-based research projects investigate issues of importance relating to transtibial

alignment, ischial containment socket trim lines as they relate to the gait of transfemoral amputees, and

the evaluation of a non-toxic resin for the direct lamination of prosthetic sockets. Field-based research

evaluates an anatomically-based transtibial alignment methodology and a wheelchair prototype manufacturing and dissemination strategy. Development projects, many of which contain research components, can be classified into two areas: those that improve the service delivery through improved

fabrication techniques, and those that develop appropriate prosthetic components and mobility aids. In

order to promote the successful transfer of techniques and technologies that are developed, the RERC

creates training materials that describe the manufacture, assembly, and use of the technique or devices

developed under the research and development program. Additionally, because the current number of

trained prosthetic technicians in developing countries is far from sufficient to adequately meet the

needs of landmine survivors, the center produces education and training materials covering the basic

science of prosthetics and orthotics. All materials are adapted to the specific languages, culture, and

needs of the mine-affected regions served by the RERC and distributed through a blended distance

learning network.
3-12 NIDRR Program Directory FY 2005 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

New Jersey

Rehabilitation Engineering Research Center on Children with

Orthopedic Disabilities

New Jersey Institute of Technology

323 M. L. King Street

Newark, NJ 07102

foulds@njit.edu

Principal Investigator: Richard A. Foulds, PhD

Public Contact: 973/596-3335

Project Number: H133E050011

Start Date: November 01, 2005

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $949,700

Abstract: The Rehabilitation Engineering Research Center on Technology for Children with Orthopedic Disabilities focuses on research and development assisting children to achieve their full potential as

productive citizens. The work plan includes a roster of projects designed to enhance the physical skills

of these children to be successful in learning, playing, and living independently. This project includes

three research and three development projects, as well as training projects serving the needs of children, families, students, and professionals. Project selection is driven by the RERC on Children with

Orthopedic Disabilities’ vision of RERCs as a source of innovation and of new technologies designed

to address the serious problems faced by children with disabilities. This project is a collaboration of

New Jersey Institute of Technology, the Childrens’ Specialized Hospital, and Rutgers University,

bringing together two academic departments of biomedical engineering with the nation’s largest

pediatric rehabilitation hospital.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-13

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering and Research Center (RERC) on Universal

Design and the Built Environment at Buffalo

State University of New York (SUNY) at Buffalo

Department of Architecture

378 Hayes Hall

Buffalo, NY 14214

rercud@ap.buffalo.edu

http://www.ap.buffalo.edu/idea; http://www.ap.buffalo.edu/rercud

Principal Investigator: Edward Steinfeld, ArchD 716/829-3485, ext. 327

Public Contact: Danise Levine 716/829-3485, ext. 330; Fax: 716/829-3861

Project Number: H133E990005

Start Date: November 01, 1999

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $599,965; FY 00 $599,952; FY 01 $599,932; FY 02 $799,835; FY 03

$799,953; FY 04 $0 (No-cost extension through 10/31/2005); FY 05 $0 (No-cost extension through 3/

31/2006)

Abstract: The RERC on Universal Design and the Built Environment promotes the adoption of

universal design. Research programs include the Prototype Anthropometric Database Project, a research database on anthropometrics of wheelchair users for application to ergonomic design, and The

Buildings in Use Project that demonstrates the benefits of universal design by conducting post-occupancy evaluations of buildings currently in use. Product development efforts include development of

prototypes for innovative universally designed products, evaluation and testing of these prototypes, and

commercialization assistance to facilitate bringing each prototype to market. The Visitability Initiative

conducts training and action research in eight cities to develop visitability demonstration projects, and

is a collaboration with Concrete Change, a consumer advocacy organization focusing on making

housing “visitable” by people with disabilities. The RERC’s activities also include universal design

education and technical assistance, along with publication and dissemination of universal design

resources.
3-14 NIDRR Program Directory FY 2005 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering Research Center on Technology Transfer

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

322 Kimball Tower

Buffalo, NY 14214-3079

jimleahy@acsu.buffalo.edu

http://cosmos.buffalo.edu/t2rerc

Principal Investigator: Steve Bauer, PhD 716/829-3141, ext. 117

Public Contact: James Leahy 716/829-3141 (V); 800/628-2281 (TTY); Fax: 716/829-2420

Project Number: H133E030025

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,999; FY 04 $950,000; FY 05 $950,000

Abstract: The activities of this project transfer and commercialize new and improved assistive devices,

conduct research to improve technology transfer practice, and support other stakeholders involved in

the technology transfer process. Four research projects investigate innovative ways to facilitate and

improve the process of technology transfer for all stakeholders: (1) Identify Innovative Technology

Transfer Practices - draws critical success factors from examples of retrospective and prospective AT

transfer case studies in various sectors; (2) Identify Innovative Technology Transfer Policies - traces the

outputs and outcomes of Federal transfer programs supporting AT related projects and assesses their

efficacy; (3) Facilitate AT Industry Innovation through Focused Market Research - provides a context

for transfer opportunities involving the AT industry and for public policy decision making; and (4)

Assess the Efficacy of Transferred Products - determines the extent to which products previously

transferred through the T2RERC impact the functional capabilities of consumers. Four development

projects increase the number and quality of successful transfers from RERC’s and other sources: (1)

Transfer Products through a Supply Push Approach - facilitates the movement of new or improved

prototype inventions to the marketplace through licenses, sales, or entrepreneurial ventures; (2) Transfer Technologies through a Demand Pull Approach - validates technology needs within the AT industry and introduces advanced technology solutions to address those needs; (3) Improve the Accessibility

of New Mainstream Products - extends participatory research to integrate consumers’ functional

requirements into the design of new mainstream products; and (4) Facilitate RERC Transfer Activity

Through Informatics - establishes a pilot informatics infrastructure and assesses its utility for increasing

communication, collaboration, and transfers
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-15

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering and Research Center (RERC) on Universal

Design and the Built Environment at Buffalo

State University of New York (SUNY) at Buffalo

School of Architecture and Planning

378 Hayes Hall

Buffalo, NY 14214

rercud@ap.buffalo.edu

http://www.ap.buffalo.edu/idea

http://www.ap.buffalo.edu/rercud

Principal Investigator: Edward Steinfeld, ArchD 716/829-3485

Public Contact: Danise Levine 716/829-3485, ext. 330; Fax: 716/829-3861

Project Number: H133E050004

Start Date: November 01, 2005

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $949,996

Abstract: The RERC on Universal Design and the Built Environment is engaging the public and

private sectors across four broad domains of the built environment: (1) community infrastructure, (2)

public buildings, (3) housing, and (4) products. The RERC-UD generates strategically important

research, development, education, and dissemination deliverables, to advance the fields of rehabilitation engineering and environmental design. The RERC-UD deliverables integrate universal design

principles within the generally accepted models, methods, and metrics of design and engineering

professionals in the building and manufacturing industries. Research projects document the efficacy of

existing universally designed environments, and generate critical human factors data essential to

resolving design and engineering problems. Development projects create evidence-based guidelines to

implement universal design concepts within the tools of the design professions, and formulate methods

to evaluate the usability of designs for people with mobility, sensory, and cognitive impairments. The

usefulness of the guidelines and evaluation methods are demonstrated by applying them to the development of innovative products and environments with industry partners. Training activities emphasize

online certificate programs in universal design for design professionals, builders, manufacturers, and

consumer advocates; a web portal and site for students and educators; and graduate programs that train

researchers in advanced methods. Dissemination outputs include traditional refereed and trade publications, an extensive website with downloadable information products and design tools, model home

demonstrations in local communities across the country, and outreach activities with professional,

business, and standards development organizations. The RERC-UD’s state-of-the-science conference

includes stakeholders in a plan to elevate universal design to an integral component of the mainstream

design and engineering disciplines.
3-16 NIDRR Program Directory FY 2005 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center on Communication

Duke University

Department of Surgery

Division of Speech Pathology and Audiology

Duke University Medical Center, Box 3888

Durham, NC 27710

aac-rerc@mc.duke.edu

http://www.aac-rerc.com

Principal Investigator: Frank DeRuyter, PhD 919/684-6271

Public Contact: Kevin Caves, ME, ATP 919/681-9983; Fax: 919/681-9984

Project Number: H133E030018

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,977; FY 04 $949,973; FY 05 $949,974

Abstract: The mission of this RERC is to assist people who use alterative and augmentative communication (AAC) technologies in achieving their goals across environments. The goals and objectives of

the RERC are to advance and promote AAC technologies through the outputs and outcomes of

research and development activities and to support individuals who use, manufacture, and recommend

these technologies in ways they value. Research projects cover the following areas: (1) improving

AAC technology to better support societal roles; (2) enhancing AAC access by reducing cognitive/

linguistic load; and (3) enhancing AAC usability and performance. Projects address issues of literacy,

telework, specialized vocabulary, contextual scenes and intelligent agents, improving interface performance, and monitoring and simulating communication performance. Development activities include:

(1) technology and policy watch; (2) new interfaces; and (3) reducing the cognitive/linguistic burden

on AAC users. Activities address monitoring emerging technologies, standards, and policies; technologies to supplement intelligibility of residual speech, dysarthric speech, and gesture recognition; brain

interface; AAC WebCrawling; and enhancing the role of listeners in AAC interactions.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-17

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Oregon

National Center for Accessible Public Transportation

Oregon State University

Apperson Hall 202

Corvallis, OR 97331-2302

ncat@oregonstate.edu

http://ncat.oregonstate.edu/

Principal Investigator: Katharine Hunter-Zaworski, PhD

Public Contact: Julie Barlow 800/916-0099; Fax: 541/737-3052

Project Number: H133E030009

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $949,479; FY 04 $949,259; FY 05 $949,044

Abstract: This RERC addresses the need for improvements in the accessibility of public transportation. This center is both important and timely because of major changes in the travel industry, and the

need to adapt to those changes in a way that provides safe and dignified travel for persons with disabilities. The transportation focus of this RERC is inter-city travel via air, rail, and bus. Air, rail, and

over-the-road buses (OTRB) account for nearly all of the inter-city public transportation. Accessibility

issues focus on persons with mobility, agility, and hearing disabilities and account for a large percentage of persons with disabilities. Two areas of research are addressed: (1) the biomechanics of wheelchair transfers in confined spaces; and (2) the perceptions, reactions, and attitudes of subjects towards

existing and proposed accessibility solutions. The biomechanics studies include the use of a sophisticated six-camera motion analysis system in conjunction with force plates to determine the motions and

forces involved in dependent and independent transfers in confined spaces, such as an aircraft aisle.

The survey-based study includes comprehensive surveys of six different groups that are directly

involved with accessibility issues including travelers with disabilities, non-travelers with disabilities,

and employees of airlines and airports, OTRB operators, OTRB manufacturers, aircraft manufacturers,

and rail operators. Drawing on results of their research, the RERC focuses on four development topics:

(1) vehicle boarding technologies; (2) real time passenger information and communications systems;

(3) accessible lavatories; and (4) passenger assistance training tools and techniques. The accessible

lavatory project has already begun, assisting with the accessibility specifications for the next generation

of Boeing and Airbus planes.
3-18 NIDRR Program Directory FY 2005 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Wheeled Mobility

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

Forbes Tower, Suite 5044

Pittsburgh, PA 15260

dbrienza@pitt.edu

http://www.rercwm.pitt.edu

Principal Investigator: David M. Brienza, PhD; Clifford Brubaker, PhD

Public Contact: Mary Jo Geyer, PhD, Associate Director 412/383-6571 (V); 412/383-6598 (TTY);

Fax: 412/383-6597

Project Number: H133E990001

Start Date: January 01, 1999

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $900,000; FY 00 $900,000; FY 01 $900,000; FY 02 $1,064,561; FY 03

$115,743; FY 04 $0 (No-cost extension through 12/31/2005)

Abstract: The RERC on Wheeled Mobility investigates the use of dynamic seating for reducing

spasticity and enhancing seating comfort; investigates the biomechanical characteristics of soft tissue

related to the risk of developing pressure ulcers and the relationship between pressure measurements

and pressure ulcer incidence, develops and validates the use of outcomes measures for seating and

mobility intervention; and investigates the use of the web as a seating decision support tool for consumers. This project also develops and evaluates a comparative data source for use in decision support

of wheelchair selection, an interface for integrating external devices with powered wheelchairs; wheelchair seating standards, standardized postural measures, injury prevention wheelchair technologies, and

enhanced controls for powered wheelchairs.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-19

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Wheelchair

Transportation

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

2310 Jane St, Suite 1300

Pittsburgh, PA 15203

rerc@shrs.pitt.edu

http://www.rercwts.pitt.edu

Principal Investigator: Patricia Karg 412/586-6906

Public Contact: Debbie Keelan 412/586-6905; Fax: 412/586-6910

Project Number: H133E010302

Start Date: November 01, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $868,840; FY 02 $899,057; FY 03 $897,745; FY 04 $899,264; FY 05

$898,054

Abstract: This RERC aims to improve the safety of wheelchair users who remain seated in their

wheelchair while using public and private motor-vehicle transportation. RERC tasks investigate and

develop new wheelchair tiedown and occupant restraint system technologies, including wheelchairintegrated restraints and universal docking concepts, that enable wheelchair users to secure and release

their wheelchair independently and quickly, and use an effective occupant restraint system without the

need for assistance. The RERC also researches the issues and factors involved in providing improved

occupant protection to wheelchair-seated drivers and passengers in rear and side impacts, and uses a

multifaceted approach, including in-depth investigations of real-world accidents, to investigate the

incidence, severity, and causes of injuries to wheelchair-seated occupants in different sizes of vehicles

and in different types of crashes and non-impact incidents experienced during vehicle motion. In

particular, this RERC explores the need for, and suitability of, using different levels of wheelchair

securement and occupant restraint in larger public transit vehicles, with the goal of recommending and

developing equipment and systems that provide for a safe ride and that are more compatible with the

operational needs of the transit environment. The program includes a comprehensive research and

development effort that involves consumers, manufacturers, students, clinicians, transport providers,

and rehabilitation technology experts. The RERC also has active programs of information dissemination, training, and technology transfer using personnel, mechanisms, and facilities that have been

previously established at the University of Pittsburgh/University of Michigan.
3-20 NIDRR Program Directory FY 2005 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Telerehabilitation

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

Forbes Tower, Suite 5044

Pittsburgh, PA 15260

dbrienza@pitt.edu

Principal Investigator: David M. Brienza, PhD 415/383-6591

Public Contact: Jean Webb 412/383-6586 (V); 412/383-6598 (TTY); Fax: 412/383-6597

Project Number: H133E040012

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 04 $849,890; FY 05 $849,930

Abstract: The vision of this RERC is to serve people with disabilities by researching and developing

methods, systems, and technologies that support remote delivery of rehabilitation and home health care

services for individuals who have limited local access to comprehensive medical rehabilitation outpatient and community-based services. Research and development activities include: (1)

Telerehabilitation Infrastructure and Architecture: development of an informatics infrastructure and

architecture that builds on existing programs and technologies of the University of Pittsburgh Medical

Center’s e-Health System, supports the RERC’s research and development activities, meets HIPAA

requirements, provides a test-bed for third party telerehabilitation applications, and can be used as a

model for future telerehabilitation infrastructure; (2) Telerehabilitation Clinical Assessment Modeling:

development of a conceptual model for matching consumers with telerehabilitation technology. The

model is user-oriented and driven by consumer experiences regarding satisfaction, simplicity, and

reimbursability of telerehabilitation; (3) Teleassessment for the Promotion of Communication Function

in Children with Disabilities: development of a web-based teleassessment infrastructure that links

therapists and child participants, allowing therapeutic content to be adapted to the child’s individual

progress and abilities; (4) Remote Wheeled Mobility Assessment: determines if individuals with

mobility impairments can obtain appropriate prescriptions for wheeled mobility devices through the use

of a telerehabilitation system based upon information and telecommunications technologies; (5) Behavioral Monitoring and Job Coaching in Vocational Rehabilitation: researches technologies to conduct

remote delivery of rehabilitation services to individuals who have limited access to rehabilitation

services that are necessary to participate in and achieve education and employment outcomes in their

community; and (6) Remote Accessibility Assessment of the Built Environment: determines the

effectiveness of a remote accessibility assessment system in evaluating the built environment of

wheeled mobility device users.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-21

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Universal Interface and

Information Technology Access

University of Wisconsin/Madison

Trace Research and Development Center

2107 Engineering Centers Building

1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

http://trace.wisc.edu/itrerc

Principal Investigator: Gregg C. Vanderheiden, PhD 608/263-5788

Public Contact: Kate Vanderheiden 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E030012

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $1,000,000; FY 04 $1,000,000; FY 05 $1,000,000

Abstract: The focus of this RERC is on both access to information (e.g., content) in its various forms,

as well as access to interfaces used within content and by electronic technologies in general. The

research and development program is carefully designed to provide an interwoven set of projects that

together advance accessibility and usability in a fashion that takes into account, and supports, the full

range of access strategies used by manufacturers and people with disabilities. These strategies range

from enhancing the design of mainstream products that can be used by individuals with different ability

sets to enhancing the ability of users to deal with the information and interfaces as they encounter

them. Key to these projects are the development of new models and approaches for characterization of

the functional requirements of current and future interfaces, and a better understanding of the type,

diversity, and similarity of functional limitations across etiologies and disabilities. Research activities

include: model generation and initial pilot studies for the characterization of interface requirements

(current and emerging) and cross-disability user abilities; abstract user interfaces and human interface

sockets; emerging technologies and future research needs; and accessible real-time visual information

presentation in meetings and virtual meetings. Development projects include: tools to facilitate the

incorporation of cross-disability interface features in public information technologies; tools to facilitate

AT-IT interoperability; server-based and “virtual assistive technology;“ and support for national and

international standards and guidelines efforts.
3-22 NIDRR Program Directory FY 2005 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Telecommunication

Access

University of Wisconsin/Madison

Trace Center, College of Engineering

2107 Engineering Centers Building

1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

http://trace.wisc.edu/telrerc

Principal Investigator: Gregg C. Vanderheiden, PhD (Trace); Judy Harkins, PhD (Gallaudet

University) 608/263-5788 (Trace); 202/561-5257 (Gallaudet)

Public Contact: Kate Vanderheiden 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E040013

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $850,000; FY 05 $850,000

Abstract: The focus of this RERC is on advancing accessibility and usability in existing and emerging

telecommunications products for people with all types of disabilities. Telecommunications accessibility

is addressed along all three of its major dimensions: user interface, transmission (including digitization,

compression, etc.), and modality translation services (relay services, gateways, etc.). Research and

development projects cover three areas: (1) development of tools, techniques, and performance-based

measures that can be used to evaluate current and evolving telecommunication strategies including

visual communication and cognitive access; (2) solving the problems faced by individuals using

hearing aids or cochlear implants with digital phones (including development of tools that users can

employ to match appropriate hearing technologies with telecommunication technologies); and (3)

improving access to emerging telecommunications for people with visual, hearing, physical, and

cognitive disabilities – particularly digital and IP-based systems including emergency communication.

The RERC looks at advances that have both short- and long-term outcomes related to assistive technologies (AT), interoperability, and universal design of telecommunications. In addition, the RERC

provides technical assistance to government, industry, and consumers, training for industry, and education for new researchers in this field. The RERC is a collaboration of the Trace Center at the University of Wisconsin and the Technology Access Program at Gallaudet University.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-23

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Accessible Medical

Instrumentation

Marquette University

Department of Biomedical Engineering

P.O. Box 1881

Milwaukee, WI 53201

jack.winters@marquette.edu

http://www.rerc-ami.org

Principal Investigator: Jack Winters, PhD; Molly Follette Story, MS 414/288-6640 (Winters); 707/

578-6839 (Story)

Public Contact: June Isaacson-Kailes 310/821-7080 800/832-0524; Fax: 909/469-5503

Project Number: H133E020729

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 02 $901,131; FY 03 $899,614; FY 04 $899,155; FY 05 $899,870

Abstract: The RERC on Accessible Medical Instrumentation: (1) increases knowledge of, access to,

and utilization of healthcare instrumentation and services by individuals with disabilities; (2) increases

awareness of and access to employment in the healthcare professions by individuals with disabilities;

and (3) serves as a national center of excellence for this priority topic area. Specific research projects

include: (1) needs analysis for people with disabilities as both recipients and providers of healthcare

services, and for manufacturers of healthcare instrumentation; (2) usability analyses to determine what

makes certain medical instrumentation either exemplary or problematic yet essential to healthcare

service delivery; (3) accessibility and universal usability analysis to identify classification and measurement approaches that could be used to explore metrics for accessibility of medical instrumentation; and

(4) policy analyses to explore how medical policies affect healthcare utilization and employment in the

healthcare professions of persons with disabilities. Specific development projects include: (1) development of tools for usability and accessibility analysis; (2) development of modified and new accessible

medical instrumentation; (3) monitoring of, and involvement in development of, emerging, accessible

healthcare technologies; and (4) development of design guidelines for accessible medical instrumentation and model policies for healthcare service delivery.
3-24 NIDRR Program Directory FY 2005 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Wayfinding Technologies for People with Visual Impairments: Research

and Development of an Integrated Platform

Sendero Group, LLC

1118 Maple Lane

Davis, CA 95616-1723

mikemay@senderogroup.com

http://www.senderogroup.com

Principal Investigator: Michael May

Public Contact: 530/757-6800; Fax: 530/757-6700

Project Number: H133A011903

Start Date: December 01, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $449,065; FY 02 $449,895; FY 03 $449,444; FY 04 $445,486; FY 05

$447,929

Abstract: This project develops a hardware and software platform that provides accessible location

and navigation information for people who are blind or who have visual impairments who are traveling

in indoor and outdoor environments. Development activities focus on creating an effective user interface and developing a common hardware and software platform that exploits the Global Positioning

System (GPS) and other current and emerging navigation technologies. Specific activities include

integrating navigation aids that have been developed by Sendero LLC (GPS Talk) and by the University of California-Santa Barbara/CMU group headed by Jack Loomis (the Personal Guidance System,

or PGS). The platform also accesses information from other devices, including Talking-SignsTM type

devices, intersection signalization controls, an indoor digital sign system to be developed during this

project at the University of Minnesota, a spatialized tactile stimulator to be developed at UCSB, a dead

reckoning pedestrian navigation system, and cellular phones with GPS capabilities. For navigating in

outdoor environments, a system could aid pedestrians who are blind at complex intersections and

roundabouts, and devices could assess and prevent veer.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-25

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Community Research for Assistive Technology

California Foundation for Independent Living Centers (CFILC)

1029 J Street, Suite 120

Sacramento, CA 95814

myisha@cfilc.org

http://www.atnet.org/CR4AT/home.html

Principal Investigator: Patricia Yeager

Public Contact: Myisha Reed, Project Coordinator 916/325-1690 (V); 916/325-1695 (TTY); Fax:

916/325-1699

Project Number: H133A010702

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 01 $299,910; FY 02 $299,893; FY 03 $229,150; FY 04 $229,534; FY 05

$299,050

Abstract: This project increases the capacity of the independent living community to work with its

members and stakeholders to collect research data on access and use of AT to improve the lives of

people with disabilities. Using a participatory research approach, the California Foundation for Independent Living Centers (CFILC) is using an ecological model to develop cumulative research data on

the use of and access to AT by people with disabilities. University researchers train participants in

research methods and assist with data collection and analysis. Community advocates conduct focus

groups, surveys, and action research in their respective regions. Advocates also train university students in community-based research related to AT and independent living.
3-26 NIDRR Program Directory FY 2005 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Georgia

Information Technology Technical Assistance and Training Center

(ITTATC)

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

ittatc@ittatc.org

http://www.ittatc.org

Principal Investigator: Dennis Folds

Public Contact: 404/894-0953; Fax: 404/894-9320

Project Number: H133A000405

Start Date: November 01, 2000

Length: 60 months

NIDRR Officer: Joel Myklebust, PhD

NIDRR Funding: FY 00 $1,500,000; FY 01 $1,500,000; FY 02 $1,500,000; FY 03 $1,500,000; FY

04 $1,500,000; FY 05 $0 (No-cost extension through 10/31/2006)

Abstract: This project provides information, training, and technical assistance to support the implementation of Section 508 of the Rehabilitation Act and Section 255 of the Telecommunications Act to

industry, state officials, trainers, and consumers. The Center promotes the benefits of universal design

to technology manufacturers, product designers and engineers, technical writers, marketers, and

purchasers of applicable technologies. It also works closely with federal regulatory agencies including

the Federal Communications Commission, the Access Board, the Department of Justice, and the

General Services Administration to advance understanding and knowledge utilization of approaches to

the requirements of Sections 255 and 508 through training and technical assistance activities. The

Information Technology Technical Assistance and Training Center is a collaborative project between

the Center for Assistive Technology and Environmental Access at Georgia Institute of Technology,

Inclusive Technologies, World Institute on Disability, University of Iowa Law, Health Policy, and

Disability Center in Washington DC, Trace Center at the University of Wisconsin Madison, NIDRR’s

Disability and Business Technical Assistance Centers, Ideal-Group, Georgia Tech Research Institute,

and ITTATC’s National Advisory Council among others. It also has a National Advisory Counsel with

representatives from all industries affected by the amended sections and experts in the field of accessibility.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-27

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Iowa

Technology for Independence: A Community-Based Resource Center

University of Iowa

Law, Health, Policy, and Disability Center

431 Boyd Law Building

Iowa City, IA 52242

peter-blanck@uiowa.edu; james-schmeling@uiowa.edu

http://www.disability.law.uiowa.edu

Principal Investigator: Peter D. Blanck, PhD, JD 319/335-9043

Public Contact: James Schmeling, JD 319/335-8458; Fax: 319/335-9098 (Blanck); 319/335-9764

(Schmeling)

Project Number: H133A021801

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $299,965; FY 03 $299,945; FY 04 $299,951; FY 05 $299,985

Abstract: The CBRC builds and enhances the capacity of community-based and consumer-directed

disability organizations to design, implement, and disseminate research activities and projects that

promote environmental access and use of technology for independence. The CBRC uses a combination of implementation strategies such as leadership development, training, and technical assistance

activities, web-assisted audioconference training, distance education, and three annual onsite symposia

in Iowa City, Houston, and Washington, D.C. CBRC activities are directed to selected research teams,

research centers, community-based disability organizations, and University research centers. Using

multi- and inter-disciplinary models, the CBRC builds and enhances the capacity of these and other

entities to conduct research that is both scientifically rigorous and relevant to real-world social, policy,

and legal interests. The research team framework pairs researchers from community-based organizations with researchers from university-based research centers to improve existing and future collaborative relationships. The research pairs comprise individuals with diverse backgrounds, in terms of their

disability type and severity, ethnicity, and socioeconomic experiences. The participants form close

working relationships designed to advance knowledge in the areas related to technology for independence and environmental access. The project merges the national experience and expertise of ILRU

regarding independent living and principles of choice and self-determination, with the nationally

recognized research expertise of LHPDC in the areas of technology access and use, employment

policy, and civil rights.
3-28 NIDRR Program Directory FY 2005 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Kansas

Mental Retardation and Technology Disability and Rehabilitation

Research Project

University of Kansas

Beach Center on Disability

1200 Sunnyside Avenue, Room 3136

Lawrence, KS 66045-7534

wehmeyer@ku.edu

http://www.beachcenter.org

Principal Investigator: Michael Wehmeyer, PhD

Public Contact: 785/864-0723; Fax: 785/864-3458

Project Number: H133A010602

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 01 $299,871; FY 02 $299,778; FY 03 $299,715; FY 04 $299,871; FY 05

$299,602

Abstract: This project supports the ability of people with intellectual disabilities (mental retardation)

and other cognitive disabilities to use electronic and information technology as well as assistive technology and technologies that involve universal design. It examines current technology design features,

gaps that exist in utilization of technologies, what state-of-the-art technology exists or is emerging that

would provide benefits, and what modifications to existing or new technology would enhance this

population’s inclusion in the community and integration into the workplace. The project includes two

national consensus conferences, in conjunction with national conferences held annually or by American Association on Mental Retardation (AAMR) and The Arc of the United States, to address issues

of technology use. Additional activities include reviewing and synthesizing the extant literature,

canvassing existing disability-related technology advocates and associations, and product development

and refinement. The project has also established a Special Interest Group on Technology and Mental

Retardation through the AAMR, which allows stakeholders in the field the opportunity to participate in

all project activities. A national expert advisory panel consisting of representatives from national

disability organizations, manufacturers, people with mental retardation, experts in the field, and parent/

family representatives are involved in all consensus-building activities and advise the project through

its duration. The project is a collaboration of the Beach Center on Disability at the University of

Kansas, The Arc, the AAMR, AbleLink Technologies, the Coleman Institute on Cognitive Disabilities, the Self-Advocate Coalition of Kansas, and the Joseph P. Kennedy Jr. Foundation.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-29

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Missouri

Assistive Technology in the Community

Washington University

School of Medicine; Occupational Therapy

4444 Forest Park Avenue

St. Louis, MO 63108

walkerc@msnotes.wustl.edu

http://enablemob.wustl.edu/Research/NIDRR/at_community.htm

Principal Investigator: David B. Gray, PhD 314/286-1658

Public Contact: Carla Walker 314/725-6676, ext.101; Fax: 314/721-9964

Project Number: H133A010701

Start Date: January 01, 2002

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $300,000; FY 02 $300,000; FY 03 $300,000; FY 04 $300,000; FY 05

$300,000

Abstract: This project promotes AT as a means of increasing participation in major life activities by

people with disabilities. Project activities include: (1) assessing the use, disuse, injury, and effects that

AT has on the participation of people with disabilities in major life activities, to determine what technologies are of the most benefit in community settings; (2) implementing a community-based AT

program in collaboration with Paraquad, a nationally recognized Center for Independent Living, to

improve the satisfaction of participants in their self-chosen life activities; (3) educating consumers,

independent living staff, educators, health care professionals, AT industry leaders, and public policymakers about the influence AT has on major life activities.
3-30 NIDRR Program Directory FY 2005 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

North Carolina

Advancing Assistive Technology Outcomes

Duke University

Division of Speech Pathology and Audiology

DUMC-3888

Durham, NC 27710

frank.deruyter@duke.edu

http://www.AToutcomes.com

Principal Investigator: Frank DeRuyter, PhD

Public Contact: Mitzi May 919/681-9983 (V); 919/684-6626 (TTY); Fax: 919/681-9984

Project Number: H133A010401

Start Date: November 01, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $449,787; FY 02 $449,932; FY 03 $449,967; FY 04 $449,994; FY 05

$449,986

Abstract: This program advances the field of AT outcomes measurement. Research activities include:

(1) performing a critical analysis of existing approaches to measurement and further developing instruments that are promising; (2) identifying unmet needs and assessing barriers to AT outcomes measurement; and (3) undertaking a prospective longitudinal study of factors associated with assistive device

adoption, use, and discontinuance. Development activities include: (1) developing and evaluating

independent electronic data collection or computer-assisted systems for the capture, analysis, and

interpretation of AT outcomes information; (2) developing and evaluating improved methods and

systems for communication of outcomes information among significant stakeholders; (3) automatic log

file performance data-capturing for AT outcomes assessment; and (4) development of new or improved

AT outcomes tools.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-31

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Ohio

Assistive Technology and Cognitive Disabilities

University of Akron

School of Speech-Language Pathology and Audiology

The Polsky Building 188K

Akron, OH 44325-3001

http://www.uakron.edu/colleges/faa/depts/sslpa/faculty/Depompei.php

Principal Investigator: Roberta DePompei, PhD

Public Contact: 330/972-6114; Fax: 330/972-3001

Project Number: H133A030810

Start Date: November 01, 2003

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $375,132; FY 04 $299,349; FY 05 $299,947

Abstract: This project assesses the use of several types of information technologies by children and

adults with cognitive disabilities, specifically individuals with TBI and mental retardation. Outcomes

include: (1) a catalog of existing portable devices for memory and organization (2) a list of features that

enhance or inhibit use of these general purpose and special-use technologies, (3) results of needs

surveys regarding use of these technologies, (4) white papers describing project findings, (5) tip cards

to assist families in purchasing devices, (6) stronger partnerships between the consumer and research

and development communities, and (7) recommendations for memory and organization device modifications and features for individuals with brain injury and mental retardation. The Brain Injury Association, Inc. leads and administers this collaborative partnership, which includes the Traumatic Brain

Injury Model Systems Projects at Moss Rehabilitation Research Institute and Spaulding Rehabilitation

Hospital, the Institute on Disabilities/Center for Excellence on Developmental Disabilities at Temple

University, and the University of Akron.
3-32 NIDRR Program Directory FY 2005 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Oregon

Think and Link: Email for Individuals with Cognitive Disabilities

Western Oregon University

Teaching Research Division

99 West Tenth Avenue, Suite 370

Eugene, OR 97401

mckay@oregon.uoregon.edu

http://www.think-and-link.org

Principal Investigator: McKay Moore Sohlberg, PhD

Public Contact: 541/346-2586; Fax: 541/346-0599

Project Number: H133A010610

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $300,000; FY 02 $300,000; FY 03 $300,000; FY 04 $300,000; FY 05

$300,000

Abstract: This project improves the access and use of electronic mail by individuals with cognitive

disabilities resulting from brain injury. The Internet’s email component has created an unparalleled

communication network linking people for commercial and social purposes. It holds tremendous

potential for lessening social isolation, one of the most pervasive and devastating consequences of

brain injury. However, virtually nothing is known about what modifications are required to provide

successful access to this technology to people with cognitive disabilities that result from brain injury. In

addition, the diverse cognitive impairments confronting people with brain injury render an enormous

challenge to the development of assistive devices that could improve accessibility to email. Activities

of this project include: (1) identifying the wide range of issues critical for long-term, effective use of

email by people with cognitive disabilities; (2) developing a diagnostic protocol, a cyber-evaluation of

the potential of a person with cognitive disabilities to use electronic communication; (3) developing a

software toolkit that allows caregivers, support persons, and professionals to fit an individual user with

a customized email system; (4) creating a virtual clinic that supports widespread dissemination and use

of these materials by cognitive rehabilitation professionals. An open-source software site on the web

allows other worldwide researchers to use the new tools and contribute tools of their own.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-33

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Pennsylvania

Information Technology for Independence: Community-Based

Research

University of Pittsburgh

6026 Forbes Tower

Pittsburgh, PA 15260

parmanto@pitt.edu

http://www.pitt.edu/~curbcut

Principal Investigator: Bambang Parmanto, PhD

Public Contact: 412/383-6649; Fax: 412/383-6655

Project Number: H133A021916

Start Date: January 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $299,945; FY 03 $299,534; FY 04 $299,945; FY 05 $299,384

Abstract: This project explores methods and technologies to mitigate barriers to computer and Internet

use encountered by people with visual impairments. These barriers include limited computer ownership and Internet availability, difficulty in obtaining and using accommodations for functional limitations (including cost issues), psychological barriers arising from inadequate coaching or mentoring, and

the limited accessibility of most websites to individuals with visual impairments. Accessibility can be

promoted through computer ownership, Internet availability, assistive technologies, and knowledgeably-staffed public computer stations, such as at independent living centers. Evaluation of these barriers and of identified accommodation strategies is the first research task of this project. Preceded by

focus groups and a widely-disseminated survey, the match of correct assistive device(s) to the individual and appropriate coaching and mentoring will be tested at community-based computer laboratories. The second research task is to develop and evaluate a new approach to Internet accessibility — a

Gateway server. This Gateway transforms the contents of any website, whatever its level of accessibility, into the most accessible format for each Internet user, as Google does for personal digital assistant

(PDA) users. The Gateway promotes Internet accessibility without requiring that commercial websites

follow promulgated guidelines or standards for users with disabilities, something that web developers

often seem to resist. Additionally, this project develops innovative metrics that enable the most rigorous

approach to the analysis of Internet accessibility and is conducting large-scale studies of different

topical categories of websites to measure progress in accessibility over time and identify the impact (s)

of new technologies.
3-34 NIDRR Program Directory FY 2005 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

ACCESS: Assisted Cognition in Community, Employment, and

Support

University of Washington

Center on Human Development and Disability

Box 357920

Seattle, WA 98195

pabrown@u.washington.edu

http://cognitivetech.washington.edu

Principal Investigator: Kurt Johnson, PhD 206/543-3677

Public Contact: Pat Brown, EdD 206/616-3714; Fax: 206/543-4779

Project Number: H133A031739

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $297,127; FY 04 $299,171; FY 05 $298,764

Abstract: Project ACCESS investigates the use of assisted cognition as a tool for caregivers in supporting individuals with disabilities in living, working, and fully participating in community activities.

The use of assisted cognition devices has the potential to increase an individual’s independence and

decrease their reliance on the family/friend/caregiver network and community support staff. Devices in

development include the activity compass and the ADL Prompter. The activity compass meshes

several technologies (Palm Pilot, GPS receiver, and wireless modem). Over time, the device learns a

user’s typical daily routines, monitors for variations, and then decides whether a prompt is necessary

when a routine is unexpectedly changed. The ADL prompter monitors data collected by sensors

embedded in a living or work environment. Using artificial intelligence software, the data from these

sensors are interpreted and decisions made based upon the needs of the user. Although initially designed for people with Alzheimer’s, these devices have applications as support tools for caregivers and

people with disabilities since they potentially support “distributed caregiving” wherein the caregiver or

family member monitors, prompts, and/or supports from a distance.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-35

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Wisconsin

ATOMS Project: Assistive Technology Outcomes Measurement System

University of Wisconsin/Milwaukee

Rehabilitation Research Design and Disability Center

College of Health Sciences

P.O. Box 413

Milwaukee, WI 53201-0413

atoms@uwm.edu

http://www.atoms.uwm.edu

Principal Investigator: Roger O. Smith, PhD

Public Contact: 414/229-6803 (V); 414/229-5628 (TTY); Fax: 414/229-6843

Project Number: H133A010403

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $450,000; FY 02 $450,000; FY 03 $450,000; FY 04 $450,000; FY 05

$450,000

Abstract: The ATOMS Project (Assistive Technology Outcomes Measurement System) targets the

definition and pre-development phases of a next-generation AT outcomes measurement system. A

comprehensive needs assessment, prototype instrument development, and consensus building activities

frame an integrated set of research and development activities to address urgent needs to identify

components of a future AT outcomes measurement system. In addition, these activities generate information about the relationships of AT outcomes factors that produce a better understanding of AT use

and abandonment.
3-36 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Interference in Hearing Aids from Digital Wireless Telephones:

Improved Predictive Methods

Advanced Hearing Concepts

998 Sea Eagle Loop

P.O. Box 1166

Bodega Bay, CA 94923-1166

harrylevitt@earthlink.net

Principal Investigator: Harry Levitt, PhD 707/875-2289

Public Contact: 707/875-2289; Fax: 707/875-2294

Project Number: H133G050228

Start Date: November 01, 2005

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 05 $149,200

Abstract: This project conducts experiments to develop a basic understanding of electromagnetic

(EM) interference and to develop ways of predicting its effects on speech perception and the usability

of cellular telephones by hearing aid wearers. Audio input signal to the hearing aid, the EM signal

being picked by the hearing aid, and the distorted speech signal in the ear canal are all monitored

simultaneously with the subjective measurements and stored digitally in a computer for subsequent

analysis. Based on these measurements, researchers predict how the EM interference affects the

intelligibility of amplified speech. The results of this study benefit not only consumers in selecting a

hearing aid and/or cellular telephone, they also provide industry with the basic theoretical underpinnings needed to allow for the development of improved wireless telephones (and other digital wireless

devices) that produce substantially less interference in hearing aids, thereby increasing accessibility of

modern digital communication systems for people with hearing loss.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-37

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Sound Localization with Multichannel Compression Hearing Aids

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

helen@ski.org

http://www.ski.org

Principal Investigator: Helen J. Simon, PhD

Public Contact: 415/345-2071; Fax: 415/345-8455

Project Number: H133G030118

Start Date: September 01, 2003

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: The primary objective of this research is to evaluate and compare wide dynamic range

multichannel compression (WDRMCC) and linear hearing aids on localization and speech perception.

To date there have been no studies of auditory localization using WDRMCC. The research uses

innovative strategies and an extension of previous work, by taking WDRMCC outside of the laboratory to evaluate it in the complexities of the normal auditory environment and looking at effects of

hearing aid experience on the ability to localize sounds. In addition to examining the general efficacy

of a new wearable WDRMCC hearing aid in localization tasks, the research objectives include detailed

study of the specific changes that occur in sound localization with WDRMCC and linear amplification

as a function of time and the differences between the two platforms. The localization testing is complete and the data is being analyzed for a publication.
3-38 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

“Cross Watch”: Development of an Intersection Information System for

Blind Travelers Based on Computer Vision

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

http://www.ski.org/Rehab

Principal Investigator: John A. Brabyn, PhD 415/345-2110

Public Contact: Deborah Gilden, PhD 415/345-2000; Fax: 415/345-8455

Project Number: H133G030080

Start Date: September 15, 2003

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: The goal of this project is to develop and evaluate a system, based on computer vision

technology, to give a blind traveler more information about intersections than is obtainable through

conventional orientation and mobility techniques. Urban intersections (the most dangerous parts of a

blind person’s travel, and the places where most accidents happen) are becoming increasingly complex, making safe crossing ever more difficult. The project develops a system named “Cross Watch” to

help the blind person find the crosswalk, learn about the shape and nature of the intersection, find the

pedestrian signal button, determine when the “walk” light is on, and alert him/her to any veering out of

the crosswalk while crossing. The primary input to the system is images from a small camera carried

like a pendant around the user’s neck, analyzed by software to extract the desired information. The

specific goals are to: (1) gather a database of real images taken by blind persons at a variety of different

kinds of intersections; (2) develop algorithms to process the images and extract the desired information;

(3) incorporate the camera and algorithms in a portable prototype; and (4) conduct user testing to

establish design parameters and human interface optimization. The software is designed to be capable

of integration as a module for the “SignFinder” system already in development for finding printed

signs in the camera images and reading them aloud to the user. The combined system provides a

quantum leap forward in independent travel for
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-39

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Efficacy of a Custom-fitting Cognitive Orthotic with Automatic

Planning and Cueing Assistance

Santa Clara Valley Medical Center

751 South Bascom Avenue

San Jose, CA 95128

jerry.wright@hhs.co.scl.ca.us

http://www.tbi-sci.org

Principal Investigator: Jeffery Englander, MD; Tamara Bushnik, PhD 408/885-2000 (Englander);

408/793-6446 (Bushnik)

Public Contact: Jerry Wright 408/793-6433; Fax: 408/793-6434

Project Number: H133G040145

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 04 $149,994; FY 05 $149,963

Abstract: Executive control dysfunction can be the biggest challenge on the recovery path toward

social and vocational independence for individuals with cognitive impairment. This project demonstrates the effectiveness of a cognitive aid, the Planning and Execution Assistant and Trainer (PEAT).

PEAT not only provides the cueing and organization functions that many current cognitive orthoses

contain, but it possesses the algorithms to monitor the progress of task execution. PEAT automatically

generates schedules, detects and corrects schedule errors, cues the user to start and stop tasks, monitors

performance, and adjusts to changes as they arise. As such, PEAT is a cognitive orthotic that has great

potential for improving outcomes across multiple functional domains for people with cognitive impairments. Individuals with executive dysfunction secondary to traumatic or acquired brain injury, as well

as other disease processes, receive either the PEAT device or standard cognitive aids/strategies. Each

subject undergoes three assessments: baseline (before study initiation), 3, and 6 months after study

enrollment.
3-40 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Colorado

Development of an Assistive Technology Outcomes Measurement

System Utilizing the International Classification of Functioning

(ICIDH-2/ICF)

University of Colorado Health Sciences Center

Assistive Technology Partners

1245 East Colfax Avenue, Suite 200

Denver, CO 80218

cathy.bodine@uchsc.edu

http://www.uchsc.edu/atp

Principal Investigator: Cathy Bodine

Public Contact: 303/315-1281; Fax: 303/837-1208

Project Number: H133G030187

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $149,939; FY 04 $149,933; FY 05 $149,996

Abstract: This project furthers the development of a secure, Health Insurance Privacy and Accountability Act of 1996 (HIPAA) compliant, multi-site, web-based assistive technology (AT) outcomes

system designed to capture data that enables the measurement of the impact of AT devices and services

for children and adults with disabilities. The project results in the design and development of a working

prototype complete with instructional support for users. The project is designed for easy addition of

data fields to support the ever-evolving schema for outcomes assessment in AT. The use of the International Classification of Functioning, Disability and Health (ICIDH-2/ICF) as the framework for development builds on initial pilot work already completed by faculty of Assistive Technology Partners,

University of Colorado Health Sciences Center, and collaboration with two NIDRR funded national

projects focused on AT outcomes development (ATOMS/CATOR). Information gained leads to

maximizing the full inclusion and integration into society, employment, independent living, family

support, and economic and social self-sufficiency of individuals with disabilities, especially individuals

with the most severe disabilities; and will lead to improved information and research on the effectiveness of AT devices and evidence-based practices.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-41

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Delaware

Automatic Generation of Optimal Tactile Graphics

University of Delaware

Electrical and Computer Engineering Department

312 Evans Hall

Newark, DE 19716

barner@ee.udel.edu

http://www.ece.udel.edu/~barner

Principal Investigator: Kenneth Barner, PhD 302/831-6937

Public Contact: Fax: 302/831-4316

Project Number: H133G020103

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $149,700; FY 03 $149,770; FY 04 $149,539; FY 05 $0 (No-cost extension

through 8/31/2006)

Abstract: This project develops and implements image manipulation algorithms optimal for generating

binary tactile graphics. Specifically, the following methods are optimized for the automatic translation

of images to binary representations appropriate for tactile display: (1) Edge Detection—boundaries in

images often represent important context queues; extracting edges allows these queues to be tactilely

represented. This can be accomplished in a multi-resolution approach allowing the user to control the

detail level presented. (2) Region Segmentation—graphic content can often be separated into distinct

regions, or objects. While edge detection operations frequently yield broken boundaries, resulting in

confusing tactile representations; segmentation can produce closed boundaries optimized to retain

object integrity that can be combined with texturing procedures. (3) Tactile Texturing—binary texturing can be introduced to yield tactile information on the image gray level or color; such texturing, or

halftoning, methods can be adopted from the literature on visual halftones and optimized specifically

for tactile representations. The efficacy of each method is tested utilizing human subjects and the

results are utilized in the optimization of each algorithm. Software conversion routines and printing

algorithms are also developed that allow the methods to be used with existing software packages, such

as word processors and web browsers, and to enable direct printing on existing hardware, such as the

TIGER printer and microcapsule paper.
3-42 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Delaware

Enhancing AAC Communication through Improved Access to Fringe

Vocabulary Words

University of Delaware

Computer and Information Sciences Department

103 Smith Hall

Newark, DE 19716

mccoy@cis.udel.edu

Principal Investigator: Kathleen F. McCoy, PhD

Public Contact: 302/831-1956; Fax: 302/831-4091

Project Number: H133G040051

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $149,993; FY 05 $149,996

Abstract: This project examines “fringe vocabulary” access, the means by which an Augmentative

and Alternative Communication (AAC) device user accesses the substantially larger set of words

needed in communication. AAC devices typically employ some mechanisms to enhance access to the

most frequently used words or “core vocabulary.” However, much communication also involves

accessing words that are not in this core. One method of accessing fringe vocabulary is word prediction, which can offer a choice of completed words based on the user’s selection of one or more initial

word letters. This project seeks to optimize word prediction for fringe vocabulary. An important factor

in this effort is the implementation of context-aware word prediction. Such a system automatically

adapts its word predictions in response to changes in the user’s actions and environment. For example,

different fringe vocabulary items may be predicted depending on the user’s geographic location,

conversational topic, and identity of his/her conversational partner. Researchers study and implement

word prediction methods based on observations of patterns of behavior exhibited by users in similar

situations.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-43

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

District of Columbia

Smart Over-Ground Body-Weight Support Gait Training System

National Rehabilitation Hospital

102 Irving Street, NW, Room 1060

Washington, DC 20010

hidler@cua.edu

http://caberr.cua.edu

Principal Investigator: Joseph M. Hidler, PhD

Public Contact: 202/877-1892; Fax: 202/726-7521

Project Number: H133G050259

Start Date: November 01, 2005

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $149,817

Abstract: The goal of this project is to build and test a new body-weight support system that allows

individuals of different body weight and varying levels of walking ability to safely practice overground gait training. In the acute stages of many neurological injuries such as stroke, spinal cord injury,

or traumatic brain injury, individuals often exhibit highly unstable walking patterns and poor endurance, making it difficult to safely practice gait for both the patient and therapist. Because of this,

rehabilitation centers move over-ground gait training to the treadmill where bodyweight support

systems can help minimize falls while at the same time raising the intensity of the training. Since a

primary goal of all individuals with walking impairments is to walk in their homes and in the community rather than on a treadmill, it is imperative that therapeutic interventions targeting walking involve

over-ground gait training. This device allows therapists to train patients early in their recovery stages in

a safe, controlled manner, and thus enhance gains in over-ground walking ability.
3-44 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Florida

The Development of a Tool to Enhance Communications Between Blind

and Sighted Mathematicians, Students, and Teachers: A Global

Translation Appliance

University of South Florida

Lakeland Campus

3433 Winter Lake Road

Lakeland, FL 33803

arthur@lklnd.usf.edu

http://karshmer.lklnd.usf.edu/~igroupuma/

Principal Investigator: Arthur I. Karshmer, PhD

Public Contact: 863/667-7067; Fax: 863/667-7096

Project Number: H133G010046

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $149,540; FY 02 $134,111; FY 03 $139,474; FY 04 $0 (No-cost extension

through 9/30/2005); FY 05 $0 (No-cost extension through 9/30/2006)

Abstract: This project builds a translator for several mark-up notations used in scientific, mathematic,

engineering, and technological fields. The primary difficulty encountered by students with visual

impairments in pursuing studies in science, mathematics, engineering or technology is how to read and

write mathematics. To overcome the limited expressiveness of six-dot braille characters, a plethora of

notations for marking-up mathematics have been devised, including Nemeth Math code, Marburg

code, the French standard, the Stuttgart standard, and others. These notations are braille-based and

designed specifically for people with visual impairments, and are not known to sighted individuals; as

a result, written technical communication between individuals who are sighted and individuals who

have visual impairments is quite difficult. Further, communication between individuals who have

visual impairments is also difficult when different notations are used. The new tool allows free conversion among the Marburg code, Nemeth code, Latex and MathML by developing a common intermediate format (CIF) for representing mathematics, and uses logic programming and denotational semantics

to translate between supported notations and the CIF. The CIF is also used to develop a mark-up

notation independent auditory browser for the understanding of complex mathematical expressions by

users with visual impairments. The auditory browser conveys the structure of a mathematical expression as well as its content via speech output. The user also has the ability to navigate the expression

interactively and focus on its subparts in order to understand the expression better.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-45

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

Analyzing Universal Design Resource Needs for Practitioners in

Industry and Government

Georgia Institute of Technology

Industrial and Systems Engineering

755 Ferst Drive

Atlanta, GA 30332-0205

jacko@isye.gatech.edu

Principal Investigator: Julie A. Jacko, PhD

Public Contact: 404/894-2342; Fax: 404/894-2301

Project Number: H133G040151

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 04 $149,391; FY 05 $149,754

Abstract: This project draws from past human factors research which has examined the quality of

design guidelines, the design process in general, and needs/task analyses to support design-tool creation. Lessons from the human factors field are considered in relation to studies of universal design

practice in industry, and needs analysis to support universal design resource creation. The target

population for this project is people who utilize universal design resources in industry and government.

The objective of the research is to understand and document actions/behaviors of practitioners involved

in design or procurement activities in relation to their use of universal design resources. A systems

analysis approach has been employed in the design of research activities. The relevant elements of the

system are examined through observation and measurement. Foura: sequential research activities are:

(1) an analysis of universal design guidance in the context of practitioner use employing heuristic

evaluation, survey, and interview methods; (2) a field-based analysis of supply-chain stakeholder

activities, which conducts a needs and task analysis using various contextual inquiry methods; (3)

controlled laboratory-based usability studies of resource use during universal design projects; and (4) a

summative resources and training effects study, which examines how professionals who are new to

universal design concepts approach design, and succeed or fail depending on the level of tuition and

the level of resource access that they have during design activities.
3-46 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

Inclusive Indoor Play

Georgia Tech Research Corporation

Georgia Institute of Technology, College of Architecture

505 Tenth Street

Atlanta, GA 30332

abir.mullick@coa.gatech.edu

Principal Investigator: Abir Mullick

Public Contact: 404/385-7210

Project Number: H133G040324

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: Thomas Corfman

Abstract: The purpose of this project is to research indoor play environments, develop universal

design play guidelines, and design models of play environments that are safe and accessible to all

children. This project: (1) conducts basic research and develops universal design guidelines for indoor

play; (2) designs, develops, and tests models of inclusive indoor play environments that promote the

highest level of safety, usability, accessibility, and social interaction; and (3) constructs and tests a

working prototype of an indoor play environment that demonstrates highest level of access for all

children. It researches play and the play environment through literature review, existing products,

existing play environments, focus group interviews with participants, expert consultations, children’s

play designs, and testing of full-scale simulated play environments. The second year of this project

focuses on development of design concepts, construction of refined design in full scale, and testing

with users. The final year of this project is dedicated to prototype construction and testing.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-47

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Tools to Help Web Developers Create More Universally Accessible Web

Resources to People with Disabilities

University of Illinois

Rehabilitation Education Center

1207 South Oak Street

Champaign, IL 61820

office@rehab.uiuc.edu

http://cita.rehab.uiuc.edu/software/office

Principal Investigator: Jon Gunderson, PhD

Public Contact: 217/244-5870; Fax: 217/333-0248

Project Number: H133G030079

Start Date: August 15, 2003

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 03 $149,959; FY 04 $149,957; FY 05 $149,993

Abstract: The most popular tools used by instructors are non-traditional web authoring tools like

Microsoft Office Applications including Power Point, Excel and Word (a recent survey of instructors

found 99% use Microsoft Office to create at least part of their web-based instructional materials). This

project creates web authoring tools that integrate the creation of accessible markup into the default

authoring process of publishing Microsoft Office documents to the web. The accessibility is integrated

into the authoring process so the author does not need any special knowledge of HTML coding or

accessibility techniques, nor to perform extra time consuming steps to add or edit accessible markup

after a document is created. The integrated authoring tool does not require awkward post publishing

accessibility evaluation and repair steps to determine what accessibility markup is needed for improved

accessibility. The HTML generated by the Office plug-ins not only improves accessibility to people

with disabilities, but the content is more accessible to everyone by supporting World Wide Web Consortium (W3C) web standards and the interoperability the W3C recommendations provide. The

interoperability of W3C recommendations makes information available to any web browser and not

just Internet Explorer (currently the default web publishing features of Office support web coding that

can only be viewed in Internet Explorer).
3-48 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Cost Effectiveness of a Computerized Oral Reading Treatment for

Aphasia

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611-4496

lcherney@ric.org

Principal Investigator: Leora Cherney, PhD

Public Contact: 312/238-1117; Fax: 312/238-2635

Project Number: H133G010098

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 01 $149,470; FY 02 $149,892; FY 03 $149,732; FY 04 $0 (No-cost extension

through 9/30/2005)

Abstract: This study evaluates the efficacy and cost-effectiveness of an innovative, computerized

treatment program for individuals with aphasia, a communication disorder and chronic condition.

Aphasia requires long-term treatment to ensure that individuals can participate in a full range of vocational, recreational, and social activities. However, recent health care changes have seriously curtailed

the amount of treatment received by patients with aphasia. In this environment effective treatments

should be developed that can be easily administered and delivered at minimum cost. Oral Reading for

Language in Aphasia (ORLA) was originally developed to improve reading comprehension in individuals with aphasia. Preliminary studies indicate that ORLA is effective in improving reading comprehension in patients with all types of aphasia. In addition to improvements in reading comprehension,

cross-modal generalization occurs in some patients, with improvements in auditory comprehension and

oral expression evident. The present study compares changes in communication performance for a

group of aphasic individuals receiving ORLA from a speech-language pathologist and a group receiving a computerized version of the ORLA treatment.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-49

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Selective Dynamic Strength Training to Enhance Upper Limb

Coordination Following Stroke

Northwestern University

Department of Physical Therapy and Human Movement Sciences

645 North Michigan Avenue, Suite 1100

Chicago, IL 60611

j-dewald@northwestern.edu

http://www.smpp.northwestern.edu/neuroimaging/NMC_Dewald.html

Principal Investigator: Julius Dewald, PT, PhD

Public Contact: 312/908-6788; Fax: 312/908-0741

Project Number: H133G030143

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $149,998; FY 04 $149,991; FY 05 $149,992

Abstract: This study investigates the use of a novel selective dynamic strengthening protocol, which

incorporates a two-joint robotic device to overcome gravity induced abnormal movement synergies

following hemiparetic stroke. The specific objectives are the evaluation and demonstration of the

usefulness and effectiveness of this selective dynamic robot-supported training regime for enhancement

of quality of life of stroke survivors. The effects of the dynamic training regime on functional arm

movements are being investigated in 2 groups of 20 subjects with chronic hemiparetic stroke. The

control group follows an 8-week conventional upper extremity strengthening protocol consisting of

shoulder abduction/flexion and elbow extension exercises. This conventional protocol represents an

adapted exercise program is available for people with chronic stroke (4.5 million) who no longer

receive formal physical therapy due to a plateau in functional restoration. The experimental group

follows a novel robot-supported training regime, which also strengthens subjects with chronic stroke

but emphasizes performance of rapid reaching movements while increasing active support of their arm.

This enables the subject to progressively deviate from their abnormal torque synergies. The evaluation

and training paradigm provides quantitative outcome measures, which can be used to reliably track a

patient’s progress using technology that is easy to implement with no risk of injury. The long-term

goals of this study are the technological development and implementation of a simple, user-friendly,

robot-supported therapeutic intervention accessible to consumers in both in- and out-patient clinics.
3-50 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Computer Treatment for Aphasia: Evaluating Efficacy and Treatment

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1353A

Chicago, IL 60611

lcherney@ric.org

Principal Investigator: Leora R. Cherney, PhD

Public Contact: 312/238-1117; Fax: 312/238-1219

Project Number: H133G040269

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $149,978; FY 05 $149,808

Abstract: This project implements an innovative computerized treatment program for individuals with

chronic aphasia, evaluates its effectiveness, and assesses the impact of treatment intensity on outcome.

The treatment, Oral Reading for Language in Aphasia (ORLA), uses state-of-the-art computer technology that allows the individual with aphasia to read aloud, and ultimately speak, sentences at the same

time as the words are produced in visible speech by an animated agent. The treatment is based on a

theoretical framework that incorporates two lines of work: the neuropsychological models of reading

and observation-execution-matching. Individuals with chronic aphasia are randomized to one of three

treatment groups: high intensity computer treatment (10 hours per week); low intensity computer

treatment (4 hours per week); and a control condition in which subjects participate in non-language

computer activities for 4 hours per week. For all groups, treatment continues for six weeks. Language

and communication skills are evaluated pre-treatment, immediately post-treatment, and at 6 and 12

weeks after the end of treatment. The primary outcome measure is the Aphasia Quotient of the Western

Aphasia Battery. Secondary outcome measures consider the ICFDH-2 categories of body structure/

function, activity and participation and include a variety of standard aphasia tests as well as quality of

life indices. Aphasia is a chronic condition that requires long-term treatment of the communication

disorder to ensure that individuals can participate in a full range of vocational, recreational and social

activities.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-51

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Visual Guidance to Improve Stepping Behavior Post-Stroke

Northwestern University

645 North Michigan Avenue, Suite 1100

Chicago, IL 60611

Principal Investigator: David A. Brown, PhD

Public Contact: 312/908-0976; Fax: 312/908-0741

Project Number: H133G050132

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $149,996

Abstract: Impaired walking ability is a major obstacle to quality of life for stroke survivors, and

recovery of independent walking is among the most important goals for individuals post-stroke. Physical therapists use physical guidance of the limb during body-weight supported treadmill training to

work toward these goals, but clinical experience suggests that these techniques have limited effectiveness because when the physical guidance is removed, the stepping behavior, although somewhat

improved, reverts to a preferred stepping pattern. This project introduces a novel simulated object

stepping paradigm to improve walking poststroke by providing the added benefits of visual guidance

during body-weight supported treadmill training. Consumers view simulated objects through a pair of

goggles and are instructed to step over challenging objects while subjected to body-weight supported

treadmill training. The dimensions of the object are adjusted so that successful stepping is associated

with an improved and more functional step length and toe clearance leading to improved gait speed

and lowered risk for falls.
3-52 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Maryland

Optimized Hands-Free Speech Recognition

UMBC

Information Systems Department

1000 Hilltop Circle

Baltimore, MD 21250

asears@umbc.edu

Principal Investigator: Andrew Sears, PhD

Public Contact: 410/455-3883; Fax: 410/455-1531

Project Number: H133G050354

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 05 $149,882

Abstract: The goal of this project is to take the collected hands-free speech recognition scientific

knowledge and interface solutions, which have been individually developed and proven, and incorporate those into a commercially available user interface software product. The project follows an iterative user centered design process whose three main phases correspond roughly to the three years of the

project. In phase 1, past research results are incorporated into a prototype design, which undergoes

usability testing in the lab. In phase 2, an “alpha” version of the product is placed in a small number of

users’ homes and/or offices, where they use the prototype for up to six months and keep a diary of

their experiences. In phase 3, a “beta” version of the software is tested by a larger number of users over

a period of six months. In this trial the users are subject to surveys regarding ease-of-use, and they and

the developers participate in an open online discussion/feedback forum for users. The end of phase 3

includes a final refinement of the product and evaluations of the performance of the new software

product, and (for marketing purposes) a comparison of performance of the hands-free implementations

of speech recognition software commercially available at that time. This project culminates with

“Version 1.0” which will be made available to the general public.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-53

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Beyond the Text: Access to Images, Audio, and Multimedia in eBooks

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

access@wgbh.org

http://ncam.wgbh.org/ebook

Principal Investigator: Geoff Freed 617/300-4223

Public Contact: Mary Watkins 617/300-3400; Fax: 617/300-1035

Project Number: H133G020091

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05 $0 (No-cost extension

through 4/30/2006)

Abstract: This project researches, develops, and disseminates recommended practices and demonstration models that enable access to and understanding of images, audio, and multimedia presented within

electronic book (eBook) formats for users who are blind or deaf. The eBook format offers online and

portable access to all manner of traditional print products, including fiction, nonfiction, textbooks,

professional journals, and other content, via personal computer, laptop, library systems, dedicated

devices, and personal digital assistants (PDAs). Educators, trainers, and publishers are beginning to

explore the learning potential of interactive web-based textbooks that include multimedia (audio and

video) and study tools such as highlighting, note-taking, bookmarking, and direct Internet connections

to references and other online learning resources. All of these features in the eBook format hold great

promise to enhance and improve access to information for users with disabilities. Accessible eBooks

could offer learners of all ages who are blind or deaf equal and ready access to trade, text, or scholarly

books, training materials, online research libraries, and all manner of electronically published resources—a major leap forward in leveling the playing field for people with disabilities at home, at

work, and at school. In order to accomplish this, eBook standards and systems must be designed to

facilitate accessible navigation as well as caption and audio description displays, and eBook materials

must be properly formatted for screen readers and/or refreshable braille displays. eBook content must

include ancillary audio and text information to enable navigation, and to make images, audio, and

multimedia accessible.
3-54 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Access to Digital Cinema Systems

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

Principal Investigator: Bradley C. Botkin 617/300-3902

Public Contact: Mary Watkins 617/300-3700; Fax: 617/300-1020

Project Number: H133G030104

Start Date: September 01, 2003

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: This project builds on WGHB National Center for Accessible Media (NCAM’s) experience

and successes in developing and proliferating MoPix technologies to make digital cinema accessible to

people with sensory disabilities. MoPix systems enable the 34 million Americans with hearing or

vision loss to enjoy first-run films with their friends and families. As in all NCAM standards initiatives,

open specifications are proposed that technology developers can use to enable myriad display options,

including, but not limited to, MoPix systems. Project goals are to: (1) Work with standards organizations to ensure inclusion of captions and audio narration in industry specifications for packaging,

identification, transport, retrieval and display of digital cinema content; (2) develop solutions and

prototypes to support delivery and display of caption and description files, both in current first-generation and future d-cinema systems; and (3) promote review of project solutions and proposed standards

through dissemination and high-profile demonstrations, and support implementation by digital cinema

systems vendors.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-55

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Speech Solutions for Next Generation Media Centers

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

Mary_Watkins@wgbh.org

http://ncam.wgbh.org

Principal Investigator: Gerry Field 617/300-3496

Public Contact: Mary Watkins 617/300-3700; Fax: 617/300-1035

Project Number: H133G040143

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: This project develops a fully operational home media center with voice output capabilities

enabled via keyboard and remote control, based on open source technologies. Project activities include: Creation of an accessible Linux-based home media center; publication of source code and

specifications for open source media center; speech interface solutions enabled via keyboard and

remote control; demonstration model of end user control and navigation of open source media platform

via a PDA with Panasonic’s small footprint speech interface; publication of end-user interface research;

and a final report that details the impact of project solutions and publications. A demonstration model

of a small footprint speech interface for this open source media center that previews how emerging

speech technologies could be used in new handheld products in development by industry is in development from Panasonic Speech Technology Laboratories. American Foundation for the Blind contributes expertise to the open source solution and conducts comprehensive end-user evaluations that

document how blind and low vision users interact with and utilize the speech interface offered by both

project solutions.
3-56 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Access to Locally Televised On-Screen Information: Auditory

Messaging and Captions During Emergency Broadcasts

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134-1008

Principal Investigator: Thomas Apone 617/300-3371

Project Number: H133G050278

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 05 $150,000

Abstract: This project explores and prototypes digital television (DTV) solutions that enable local

television stations to send messages, warnings, and alerts that meet the communication needs of people

with sensory disabilities. Specifically, NCAM researches and develops systems and procedures that

enable real-time processing and conversion of on-screen text crawls into speech output. Utilizing offthe-shelf speech synthesizers, WGBH works with broadcast stations to prototype methods of processing text entered into broadcast graphics systems into speech output that can then be made available via

the secondary audio program (SAP) channel or auxiliary DTV audio channels. The project also

develops systems and procedures that address display conflicts between captions and on-screen graphics by developing methods of tagging and prioritizing text and graphics messages within automated

display systems.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-57

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Making In-Flight Communications and Entertainment Accessible

WGBH Educational Foundation

125 Western Avenue

Boston, MA 02134

ncam@wgbh.org

http://ncam.wgbh.org

Principal Investigator: Larry R. Goldberg

Public Contact: 617/300-3486; Fax: 617/300-1035

Project Number: H133G050254

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 05 $150,000

Abstract: This project researches barriers and develops solutions that can make inflight communication and entertainment systems (IFE) accessible to people with sensory disabilities. Major project

activities are to: (1) Research technical solutions, procedures, and practices required to infuse access

considerations into inflight hardware, digital content management systems, interactive and display

systems, connectivity, and content; (2) develop a demonstration model using a state-of-the-art IFE

system that prototypes inflight system support of user-selectable captions, audio description, and

talking menus; (3) participate in World Airline Entertainment Association technical committees and

working groups and promote the adoption/inclusion of standard accessibility metadata models into new

and existing standards developed by those groups; (4) publish a white paper outlining the functional

requirements of an accessible IFE system; and (5) promote review of demonstration model and proposed specifications through dissemination and high-profile demonstrations within industry, government, and the disability community.
3-58 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Minnesota

Cued-Response to Stimulate Saccade-Step Planning and Mobility in

Progressive Supranuclear Palsy

University of Minnesota

Department of Physical Medicine and Rehabilitation

MMC 388, 420 Delaware Street SE

Minneapolis, MN 55455

difab001@umn.edu

Principal Investigator: Richard P. Di Fabio, PhD

Public Contact: 612/626-4973; Fax: 651/653-0909

Project Number: H133G030159

Start Date: September 01, 2003

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $150,000; FY 04 $149,999; FY 05 $150,000

Abstract: Vertical gaze palsy and recurrent falls are cardinal features of progressive supranuclear palsy

(PSP). These symptoms interfere with safe ambulation and functional mobility. The deficit in gaze

control has a known pathoanatomical origin, but may also involve cognitive dysfunction manifest by a

loss of executive cognitive abilities and visual attention. The purposes of this project are to: (1) determine whether a cued-response intervention is effective in promoting gaze saccade function during a

step climbing task, (2) determine if improved gaze control leads to a reduction of falls and improved

gait mobility, and (3) examine the neurocognitive mechanisms underlying any such improvements.

Preliminary research suggests that vertical gaze palsy can be improved by cueing patients with PSP to

initiate a new stepping pattern while the subject is under motion toward the object. The cue is presented in a stimulus-response compatibility paradigm, which requires the use of executive cognitive

function (planning and problem-solving) to select the appropriate limb for stepping. Two groups of

subjects with PSP will be randomly assigned to receive limb-cue plus eye movement training, or

walking practice with no training in a cross-over design. A follow-up will evaluate retention and

transfer of learning. Outcomes will be assessed using functional tests of mobility and a kinematic

analysis synchronized with infrared oculography.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-59

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Jersey

Development of an Intelligent Patient Lift and Transfer Device

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

tedwards@kmrrec.org

http://www.kmrrec.org/rehabengineering

Principal Investigator: W. Thomas Edwards, PhD

Public Contact: 973/324-3539; Fax: 973/243-6984

Project Number: H133G040183

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: The objective of the project is to develop the Intelligent Patient Lift (IPL) and Transfer

Device based upon an advanced state-of-the-art technology that addresses present shortcomings:

complexity and safety, cost and availability, level of effort for caregivers, and the number of caregivers

needed to complete a transfer. This innovative system incorporates a recently patented concept proven

in other lifting applications and developed by project collaborator Yobotics Incorporated. Based on

needs identified at KMRREC-KIR, researchers develop and demonstrate refinements of the Patient

Lifting frame and sling. The goal is to introduce an intelligent interface that provides both natural and

comfortable interactions between the patient/user and the caregiver. The novel features incorporated in

the IPL introduce a more intuitive control of the system and improve the quality of user-caregiver

interactions by reducing the level of effort and complexity. The new IPL device is demonstrated and

evaluated in an active rehabilitation setting. This fundamental lifting technology can be extended to

other applications (such as vehicle entry and homecare) to benefit the majority of those with mobility

disabilities.
3-60 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Web-based Student Processes at Community Colleges – Tools for

Ensuring Accessibility

Cornell University

Employment and Disability Institute

School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853

smb23@cornell.edu

http://edi.cornell.edu

Principal Investigator: Susanne Bruyère, PhD

Public Contact: 607/255-9536 (V); 607/255-2891 (TTY); ; Fax: 607/255-2763

Project Number: H133G040255

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: Web-based processes (such as student recruitment, information dissemination, applications,

course registrations, and online coursework) have become increasingly important to the way postsecondary educational institutions communicate and interact with their potential and enrolled student

populations. This project targets Cornell’s information technology (IT) accessibility research and

development efforts specifically to the national community college network. A multiple-prong approach is used to examine the state of web accessibility in the community college network and identify

IT accessibility barriers for students with disabilities and ways to address them. The project includes a

review of selected online application processes in 30 community colleges. The focus of the Year Two

research is a telephone survey across all community colleges nationally regarding use of web-based/

online student recruitment, application, and registration processes and the colleges’ awareness of web

accessibility issues and policies regarding accessibility. The project is a collaborative effort between

EDI and Cornell University’s Institute for Community College Development (ICCD).
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-61

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Advanced Tissue Vascular and Biomechanical Studies for Improved

Prosthetic Socket Design

Narrows Institute for Biomedical Research

VA NYHHS; Rehabilitation Engineering Research (151)

423 East 23rd Street

New York, NY 10010

vlh3@nyu.edu

http://www.med.nyu.edu/rehabengineering

Principal Investigator: Vern L. Houston, PhD

Public Contact: 212/951-3339; Fax: 212/951-3342

Project Number: H133G030069

Start Date: January 01, 2004

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $149,993; FY 04 $149,932; FY 05 $149,936

Abstract: The objectives of this project are: (1) to establish the prevalence of prosthesis induced

macro-circulatory occlusion; and (2) to determine if the degree of occlusion produced (if any) is of

sufficient magnitude and duration to cause ischemia during walking and other physical activities, that

can lead to chronic tissue atrophy. Preliminary studies have shown that patellar tendon bearing (PTB)

prosthetic sockets can occlude transtibial amputees’ residual limb circulation. Specifically, the project

researches whether: (1) didactically taught and commonly clinically applied PTB sockets occlude

transtibial amputees’ popliteal arterial circulation, and (2) the circulatory occlusion so produced causes

ischemia in residual limb tissues during periods of moderate to
3-62 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

The Universal eLearner-An Innovative Approach for Universal Online

The American Foundation for the Blind

11 Penn Plaza, Suite 300

New York, NY 10001-2018

luisg@afb.net

http://www.afb.org

Principal Investigator: Jim Veltman 212/502-7648

Public Contact: Lou Gutierrez; Matt Kaplowitz 212/502-7732 (Gutierrez); 212/213-9796

(Kaplowitz); Fax: 212/502-7791

Project Number: H133G050113

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $149,518

Abstract: The purpose of this project is to develop a prototype of the Universal eLearner, an online

educational media platform that addresses the specialized needs of all segments of the student/learner

population, while representing a sound business model for educational publishers. The category of

specialized learners encompasses students with learning disabilities, English language learners, students who are blind or have visual impairments, deaf or hard of hearing students, and students with

cognitive disabilities. The Universal eLearner applies a curriculum-driven approach to making online

educational content accessible to the largest possible number of students, including students with

learning, cognitive, hearing, and visual disabilities, as well as English language learners. The American

Foundation for the Blind (AFB), in conjunction with Bridge Multimedia, a New York City-based

accessible media company, adapts two preexisting integrated learning modules produced for general

student populations in order to develop two accessible prototypes: (1) upper-elementary social studies;

and (2) upper-elementary science. To ensure that the finished prototypes support all students with

specialized learning challenges, the project uses: (1) technical assessments based on AFB’s methodology for evaluating universal accessibility and usability of electronic and information technology

products; (2) field testing providing quantitative and qualitative data on accessibility and usability from

the perspectives of students, teachers, and parents; and (3) a representative Advisory Board with a

significant role in all phases of the project.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-63

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

North Carolina

ABC-Link: A Web-Based Literacy Assessment Tool for Students with

Significant Disabilities

University of North Carolina at Chapel Hill

Allied Health Sciences

CB# 7335, TR46

Chapel Hill, NC 27599-7335

Karen_Erickson@med.unc.edu

Principal Investigator: Karen Erickson, PhD

Public Contact: 919/966-8828; Fax: 919/843-3250

Project Number: H133G020133

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 02 $149,733; FY 03 $149,688; FY 04 $149,545; FY 05 $0 (No-cost extension

through 9/30/2006)

Abstract: This development project is designed to create a web-based assessment tool, ABC-Link,

that provides accessible reading assessment tasks via an innovative interface that simultaneously

supports students with severe speech and physical impairments and the adults who assess them.

Through its use of state-of-the-art technology, ABC-Link is an interactive site that: (1) guides the

assessment as it progresses based on a model of behavioral and test-administration efficiency, (2) feeds

the assessment results back to an expert team for interpretation, (3) guides the adult in conducting

further assessment as necessary, and (4) provides a suggested plan of intervention.
3-64 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Development of Intelligent Personal Activity Management and

Prompting Applications for Individuals with Cognitive Disabilities

Eugene Research Institute

99 West 10th Ave, Suite 395

Eugene, OR 97401

tkeating@eugeneresearch.org

http://www.eugeneresearch.org

Principal Investigator: Thomas Keating, PhD

Public Contact: 541/342-3763; Fax: 541/342-4310

Project Number: H133G050313

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 05 $149,936

Abstract: This project builds on the successful development of the Picture Planner icon-driven personal activity management application, supported in part by previous NIDRR funding. One of the

conclusions of the field testing that led to the development and testing of that application is that there is

a need for intelligent activity planning and prompting applications that combine cognitively accessible

software design with innovative artificial intelligence approaches to provide smart applications for life

management and decision-making. The goal of the present project is to use a consumer-driven, participatory design process to build on that foundation and develop a prototype smart planning and prompting software package for implementation on desktop and handheld platforms. The target population is

individuals with significant cognitive disabilities such as mental retardation and autism. The primary

outcome of this project is a field-tested and experimentally evaluated intelligent life skills management

system that enables people with cognitive disabilities to improve their competence at daily activity

management and enhance their community integration.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-65

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Oregon Project Rehabilitation of Communication Skills in Dementia

Through

Oregon Health and Science University

P.O. Box 574

Portland, OR 92707

friedm@ohsu.edu

Principal Investigator: Melanie Fried-Oken, PhD

Public Contact: 503/494-7587; Fax: 503/494-6868

Project Number: H133G040176

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: The project increases access to AT by revealing which communication related devices are

appropriate for persons with dementia. The goals of the research are to demonstrate that alternative and

augmentative communication (AAC) use is a promising avenue for improving the lives of adults with

dementia and of the families and caregivers who need to communicate with them. The study addresses

the input mode of level of symbol that optimizes AAC device use for persons with moderate dementia.

It compares the effectiveness of abstract symbols (printed words), two-dimensional symbols (colored

photos), and three-dimensional symbols (small objects) in AAC devices. The study also addresses the

effect of output mode on conversational skills of persons with moderate dementia. It compares the use

of electronic voice-output devices with non-electronic devices.
3-66 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

The Efficacy of Computer and Sense Wear Technologies for Promoting

Health in Adults with Fibromyalgia: A Randomized Clinical Trial

University of Pittsburgh

5012 Forbes Tower

Pittsburgh, PA 15260

jcr@pitt.edu

Principal Investigator: Joan Rogers, PhD; Margo Holm, PhD

Public Contact: Joan Rogers 412/383-6621; Fax: 412/383-6613

Project Number: H133G020159

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 02 $149,996; FY 03 $149,966; FY 04 $149,996; FY 05 $0 (No-cost extension

through 9/30/2006)

Abstract: This study uses a cognitive-behavioral intervention to facilitate adoption of a wellness

lifestyle in people with fibromyalgia. Specifically, researchers test the efficacy of an Internet-based

health promotion computer program used in conjunction with a wearable sensor (SenseWearTM) for

developing a wellness lifestyle and improving the quality of life of adults with fibromyalgia. Consumers are assisted in: (1) establishing goals in the areas of physical activity, nutrition, participation in

meaningful, productive activities, sleep, stress-reducing activities, and emotional state; (2) monitoring

progress toward established goals; and (3) assessing the relationship between these areas in one’s daily

life. In addition, based on consumer input, the program offers suggestions for developing a wellness

lifestyle. SenseWearTM provides objective data about activity level and stress level for consumers to use

in combination with the self-assessment data provided by the Internet program.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-67

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Tennessee

Factors Affecting Directional Hearing Aid Performance in Children

Vanderbilt University School of Medicine

Vanderbilt Bill Wilkerson Center for Otolaryngology and Communication Sciences

1114 - 19th Avenue South

Nashville, TN 37212

todd.a.ricketts@vanderbilt.edu

Principal Investigator: Todd A. Ricketts, PhD

Public Contact: 615/936-5258; Fax: 615/936-5013

Project Number: H133G020097

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $149,576; FY 03 $149,844; FY 04 $149,915; FY 05 $0 (No-cost extension

through 8/31/2006)

Abstract: This project investigates quantification of the angular position of children’s heads in classroom environments and measurements of speech understanding and classroom performance in environments that simulate the most common listening situations children experience. Directional hearing

aids represent one of the few technologies that have the potential to positively impact children’s speech

understanding in classroom environments without requiring hardware external to the child. These

instruments work by reducing amplification for sounds arriving from behind the child, relative to that

provided for sounds arriving from the front. Therefore the intensity level delivered to a child’s ear for

sound sources of interest will be greater than that of other sounds, if the assumption is made that the

child will face the sound source of interest. Unfortunately, the angle at which children position their

heads in classroom environments is unknown. In addition, the magnitude of improvement in speech

intelligibility and classroom performance afforded by directional hearing aids in comparison to their

traditional, omnidirectional counterparts in real classroom environments is unknown. Results to date

indicate that children as young as 4-6 are able to accurately orient their heads towards sound sources.

Better accuracy it generally associated with more difficult listening situations, but be detrimental in

others. The specific relationship between directional benefit and environment appears to be predictable

and is highly dependent on the location of the sound and noise sources.
3-68 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Utah

Bottom-Up Modeling Of Mass Pedestrian Flows: Implications for the

Effective Egress of Individuals with Disabilities

Utah State University

Center for Persons with Disabilities

6800 Old Main Hill

Logan, UT 84322

keithc@cpd2.usu.edu

Principal Investigator: Keith Christensen, MLA

Public Contact: 435/797-3997; Fax: 435/797-7219

Project Number: H133G030013

Start Date: November 01, 2003

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: The purpose of this research project is to improve the exit of individuals with disabilities

from buildings and other settings in emergencies. The project researches the effect of the current and

proposed Americans with Disabilities Act Accessibility Guidelines (ADAAG) for the built-environment on the egress of individuals with disabilities during the mass pedestrian flows (MPFs) triggered

by health-safety events, and the effect of security-oriented design methods on the egress of individuals

with disabilities during health-safety event triggered MPFs. The objective of the project is to measure

the emergent behaviors of the diverse sample populations of six representative built-environments (an

airport, high school, conference center, multi-story office building, federal development, and secured

federal development) during simulated health-safety events. An intervention (modification of the

design character of the built-environment) is applied to eliminate conditions occurring during MPFs,

which adversely affect the egress of individuals with disabilities.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-69

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

West Virginia

Project Safe EV-AC: Safe Evacuation and Accommodation of People

with Disabilities

West Virginia University

Job Accommodation Network (JAN)

224 Spruce Street

Morgantown, WV 26506

evac@icdi.wvu.edu

http://evac.icdi.wvu.edu

Principal Investigator: Richard Walls 304/293-7186

Public Contact: Beth Loy, Project Director 304/293-7186; Fax: 304/393-5407

Project Number: H133G040318

Start Date: September 01, 2004

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $149,970; FY 05 $149,949

Abstract: The Project Safe EV-AC (Safe EVacuation and ACcommodation of People with Disabilities) Team, which includes the Job Accommodation Network and the National Organization on

Disability’s Emergency Preparedness Initiative, develops high quality, comprehensive, easy-to-use safe

evacuation materials that include people with disabilities. The Project Safe EV-AC Team researches

prior safe evacuation studies and training products; coordinates a network of expert and end-user

Advisor Groups; and produces comprehensive, yet cost-effective, safe evacuation education and

training tools using the most appropriate technology for the material. Project Safe EV-AC targets

certain audiences, including people with disabilities and emergency responders. The project uses a

continuous improvement model with enhanced feedback loops to ensure that the products created are

rigorously evaluated by those who use them. The end product includes a final report for NIDRR

articulating the existing gaps in knowledge and product development in the field of safe evacuation

and accommodation for people with disabilities.
3-70 NIDRR Program Directory FY 2005 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Functional Effects of Bifocal Use: Implications for Falling Interventions

University of Wisconsin/Milwaukee

Rehabilitation Research Design and Disability Center

College of Health Sciences

P.O. Box 413

Milwaukee, WI 53201-0413

Principal Investigator: Roger O. Smith, PhD

Public Contact: 414/229-6803 (V); 414/229-5628 (TTY); Fax: 414/229-6843

Project Number: H133G050340

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $149,999

Abstract: This project conducts an integrated set of research activities to address a seriously under

considered factor in falls research, the use of bifocal lenses. This project focuses on new users of

bifocal glasses, typically individuals in their 4th or 5th decade, and targets a better understanding of falls

intervention strategies related to eyeglass wear. Falls and fall-related injury among elders are a widely

documented public health problem causing decreased function, suffering, increased health care costs,

and even morbidity and mortality among older persons. Reasons for falls can be quite complex and are

generally considered to be multifactorial. Specific to middle aged workers, it is known that a significant

number of workplace accidents occur on stairs and uneven surfaces. Comparison of data across studies

generates new knowledge about the process of adaptation to multifocal lenses with application to falls

in the elderly. Recommendations are articulated not only for multifocal lens wearers but also for the

producers of lenses and biomedical engineers.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-71

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

California

Automated DAISY Book Production System

Automatic Sync Technologies

4460 Quicksilver Court

Hayward, CA 94542

kevin@automaticsync.com

http://www.automaticsync.com/caption

Principal Investigator: Kevin Erler, PhD

Public Contact: 510/582-3437; Fax: 510/582-3437

Project Number: H133S050018

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 05 $75,000

Abstract: Digital Talking Books represent a substantial improvement over old cassette-based audio

books for all people with print disabilities (including those with visual impairments and learning

disabilities). The DAISY (Digital Accessible Information System) standard makes talking books both

accessible and easily navigable. Though aided by some production software, DAISY book production

is still a labor-intensive process. In particular, the process of synchronizing the audio and text is left as a

manual process in current production tools – making the production process a tedious and time-consuming one. The result is long production times, and low-resolution synchronization. This project

applies an automated audio synchronization technology to the automation of DAISY book production,

thereby significantly lowering production costs and turnaround times. This process also enables very

high-resolution synchronization, allowing DAISY users to realize the full potential of Digital Talking

Books. The project develops a proof-of-concept prototype that offers automated DAISY production to

audio book producers, and enables them to inexpensively produce fully synchronized text and audio

books.
3-72 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

California

Internet Access by Using Any Phone and User’s Voice: Accessibility to

Blind, Visually Impaired, and Dyslexic People

InternetSpeech

5942 Foligno Way

San Jose, CA 95138

emdad@internetspeech.com

http://www.internetspeech.com

Principal Investigator: Emdad Khan, PhD 408/532-9630

Public Contact: 408/532-8460; Fax: 408/274-8151

Project Number: H133S050097

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 05 $74,300

Abstract: This project provides people with visual impairments or dyslexia with a “rendering” technique that allows them to easily access the Internet using any telephone and without using a computer.

The research is based on an existing Voice Internet solution, which many blind and visually impaired

people have used successfully. An Intelligent Agent is used to provide contents from the Internet using

proper rendering of the visual Internet in real time to concise and meaningful audio or text. Rendering

is achieved by using page highlights, finding right as well as only relevant contents on a linked page,

assembling right contents from a linked page, and providing easy navigation. Consumer input is used

to modify and improve the system as it is developed.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-73

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Colorado

WayFinder: A Portable Multimedia Software System for Supporting

Independent Community Transportation for Individuals with

Intellectual Disabilities

AbleLink Technologies, Inc.

528 North Tejon Street, Suite 100

Colorado Springs, CO 80903-1158

dan@ablelinktech.com

http://www.ablelinktech.com

Principal Investigator: Daniel K. Davies

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S050015

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 05 $75,000

Abstract: Public transit systems and walking present an opportunity for more independent and integrated transportation, as well a more normalized lifestyle. However, there are many inherent barriers to

using transit systems for people with intellectual disabilities, such as complexity of schedules, comprehension of time, literacy deficits, unfamiliar routes, and the negative prospects of getting lost. This

project develops and evaluates WayFinder, a portable system that integrates palmtop computers, global

positioning systems, and instant messaging technology in a simplified multimedia interface to provide

intelligent audio and visual cues to facilitate independent navigation of public transit systems. The

system is fully self-contained and requires no changes to the infrastructure of the public transit system

(i.e. no requirement to make each bus GPS-enabled, etc.). This project develops requirements for the

WayFinder system, designs and builds a software prototype, and conducts a pilot study to evaluate the

utility of the system for improving independence and self-direction in public transit navigation.
3-74 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Colorado

WorkRight Skill Builder: A Customizable State-of-the-Art Simulation

Software System to Support Vocational Social Skills Training for

Students and Adults with Intellectual Disabilities

AbleLink Technologies, Inc.

528 North Tejon Street, Suite 100

Colorado Springs, CO 80903-1158

steve@ablelinktech.com

http://www.ablelinktech.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S050074

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $75,000

Abstract: Deficits in social skills is one of the greatest barriers to successful community-based employment and residential living for individuals with intellectual disabilities. Current methodologies for

social skills training are generally expensive, often requiring one-to-one instruction and a personalized

curriculum to address the specific needs of different individuals. However, recent advances in computer animation/simulation technology have created an opportunity to provide self directed computerbased social skills training that can be personalized through the use of avatar-rendering technology to

simulate both a trainee’s and his or her actual community environment in addressing individual social

skills training needs. In a preliminary research study a prototype was developed and utilized to assess

the feasibility of using state-of-the-art computer animated simulations and human avatars to provide

social skills training to individuals with intellectual disabilities. Results of the study provided statistically significant evidence of the ability of this population to benefit from the computer animation/avatar

approach. To build on this research, this project presents the WorkRight SkillBuilder, a state of the art

computer-based simulator application designed to provide customizable, self-directed social skills

training for individuals with intellectual disabilities on community-based vocational social skills. Phase

I activities include requirements development, prototype creation, and evaluation of the feasibility of

the WorkRight concept. In Phase I, the project develops a prototype of an interactive social skills

training system that is to be evaluated for its effectiveness in providing measurable gains in social skills

via a pretest/posttest model.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-75

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Colorado

SoundAlert: A Centralized System Capable of Alerting People Who Are

Deaf or Hearing Impaired of Critical Sounds in Their Environment

CreateAbility Concepts, Inc.

8007 Hillsboro Court

Fort Collins, CO 80525

stephenmsutter@aol.com

http://www.createabilityinc.com

Principal Investigator: Stephen M. Sutter

Public Contact: 970/391-8843; Fax: 970/635-0049

Project Number: H133S050114

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 05 $75,000

Abstract: This project researches and develops a combination of state-of-the-art, portable wireless

technology, network services, and sensor technology with a unique approach to enable individuals

who are non-hearing to: (1) initiate and receive emergency communications, (2) receive alerts in the

workplace or home environments on a single pocket-sized device through innovative sound discrimination techniques able to identify specific sounds with accuracy, and (3) combine this functionality

with supplementation or replacement of other alerting technologies for convenience on the same single

platform. The system enables outbound and inbound communication with emergency services in

response to such events as evacuation or rescue information when needed, thus alleviating a major

concern of this population for their personal safety. This project demonstrates the technical merit and

feasibility of this system to: (1) detect specific events in the environment, (2) relay alerts of this information to a handheld user device, and (3) open real-time communications with emergency personnel.

This greatly enhances safety, convenience, and independence.
3-76 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Colorado

SSIMPLE: A Speech and Switch Input Mobile Phone that Links

Everyone

CreateAbility Concepts, Inc.

8007 Hillsboro Court

Fort Collins, CO 80525

stephenmsutter@aol.com

http://www.createabilityinc.com

Principal Investigator: Stephen M. Sutter

Public Contact: 970/391-8843; Fax: 970/635-0049

Project Number: H133S050073

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $75,000

Abstract: This project demonstrates the technical merit, feasibility, and cost efficiency of combining

commercially available SmartPhone technology with an innovative design and state-of-the-art neural

net algorithms to produce a SSIMPLE device - a Speech and Switch Input Mobile Phone (that) Links

Everyone. This device enables single switch and voice-only users to independently send and receive

text messages, and answer or make phone calls. Specific objectives for Phase I are to: (1) Determine

the end user requirements via surveys and focus group meetings; (2) construct a prototype that incorporates a Graphical User Interface (GUI), fast Fourer transform (FFT) algorithms, and neural net algorithms to provide an easy to use interface, and to provide fast learning of numbers, names, words, and

symbol associations and therefore fast prediction to maximize the efficiency of the voice command or

single switch user; and (3) perform a usability analysis with actual single switch users to test the

SSIMPLE device’s ability to adjust to an individual’s capabilities, and its ability to help them communicate.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-77

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Colorado

Talking Tags – Fast identification of Objects and Locations for

Individuals with Visual Impairments

CreateAbility Concepts, Inc.

8007 Hillsboro Court, South

Fort Collins, CO 80525

ss_createability@yahoo.com

http://www.createabilityinc.com

Principal Investigator: Stephen M. Sutter

Public Contact: 970/391-8843; Fax: 970/635-0049

Project Number: H133S050115

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $75,000

Abstract: This project demonstrates the technical merit, feasibility, and cost effectiveness of combining commercially available components with an innovative approach to deliver a portable “talking tag”

system for people with visual impairments. People with visual impairments remain challenged in

orienting themselves as well as finding, identifying, sorting, and retrieving objects in vocational,

educational, and independent living settings. Traditional methods include Braille labels or other tactile

markings, which may be difficult to locate, and convey a limited amount of information. Talking bar

code readers have been introduced, but present new challenges and will soon be obsolete as corporations and distribution channels have committed to change to an electronic ID “tag” known as Radio

Frequency Identification (RFID) to reduce costs. The technology has drastically improved to facilitate

this transition and RFID tags do not require line-of-sight orientation. RFID will soon become a ubiquitous technology which can allow the visually impaired to conveniently identify and orient themselves

and identify a potentially limitless range of objects. To facilitate the transition, this system would

support both bar codes and RFID tags. Specific Phase I objectives include: (1) determine end user

requirements, (2) develop the prototype system, and (3) perform a usability analysis with actual users.
3-78 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Connecticut

Social Simentor: An Interactive Simulation e-Learning Tool Designed

to Develop Interpersonal and Social Skills for Individuals with

Cognitive Disabilities to Improve Hiring and Job Retention

Access Technologies Group

P.O. Box 1558

New Canaan, CT 06840

lucyb@atghome.com

http://www.atghome.com

Principal Investigator: Lucy S. Baney

Public Contact: 203/966-8572; Fax: 203/966-0414

Project Number: H133S050078

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 05 $75,000

Abstract: This project develops Social SimentorTM, an e-learning product offering interactive scenarios and feedback for social skills training in a penalty-free, non-judgmental environment. This

project is an adaptation of Simentor® training software, originally developed to teach business interpersonal skills to adults. Researchers work with experts in social development to create Social

SimentorTM, an adaptation redesigned to meet universal needs. This prototype is an interactive application that employs social interactions to teach key social conventions, including appropriate responses,

reacting to body language and facial expressions, along with the ability to ask for help in order to

facilitate functioning in mainstream society. The commercial application of Social SimentorTM is

significant as it can address a range of inappropriate social skills without direct adult facilitation.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-79

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Illinois

Development of an Authoring Tool that Promotes Accessibility

MSF&W, Inc.

3445 Liberty Drive

Springfield, IL 62704

mscott@msfw.com

http://www.msfw.com

Principal Investigator: Michael A. Scott 217/698-3535, ext. 207

Public Contact: Laurie King 217/698-3535, ext. 209; Fax: 217/698-3593

Project Number: H133S050060

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 05 $75,000

Abstract: This project explores the development of an “accessibility-first” authoring tool that actively

supports non-technical authors in the creation of accessible electronic documents, and thereby promotes access to information in educational, employment, and community settings. Phase I activities test

two underlying hypotheses: (1) Existing authoring tools do not adequately support “typical” authors in

producing accessible documents, and (2) an authoring tool designed to intentionally promote accessible

design principles will significantly improve the likelihood that typical authors will produce accessible

documents. The project uses a combination of user tests and expert evaluations. A weighted scoring

metric, based on practical application of leading accessibility standards, is used to compare the functional accessibility of documents created by each tool in typical-use and best-case scenarios. A prototype-authoring tool designed with an accessibility-oriented authoring interface and integrated accessibility supports is tested and compared to existing tools.
3-80 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Massachusetts

Proximity Sensing Textile as a Wearable Aid to Orientation and

Mobility for Individuals with Visual Impairment

Science, Math & Engineering, Inc.

45 Manning Road

Billerica, MA 01821-3934

burns@aerodyne.com

Principal Investigator: Michael L. Burns, PhD

Public Contact: 978/663-9500, ext. 282; Fax: 978/663-4918

Project Number: H133S050133

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $75,000

Abstract: This project initiates development of Proximity Sensing Textile as a smart textile array of

infrared sensors embedded in conventional clothing that detects and reports hazards, such as drop-offs,

overhangs, and jutting objects, to the wearer. Proximity Sensing Textile is a wearable wayfinding

electronic travel mobility aid that preserves the comfort, appearance, and dignity of everyday apparel.

The clothing supplies hazard avoidance cues to the wearer that complement orientation, mobility, and

navigation information accessible to the wearer from wayfinding systems, be they infrared, GPS, or

radio technology based. Development of the infrared technology based textile begins within the

conceptual testbed of Talking Signs®, a remote infrared audible signage system that transmits orientation information to individuals with visual impairments. The SBIR Phase I effort produces a textile that

receives infrared transmission from a simulant Talking Signs environment and supplies the wearer with

cues that assist orientation, mobility and navigation. The SBIR Phase II effort further advances Phase I

developments by producing a textile that actively interrogates the immediate surroundings of the

wearer for hazards and reports them through cues designed into the clothing. The empirical research

base for the Phase I project combines smart textile research pioneered by Science, Math & Engineering, Inc. with NIDRR research on Talking Signs. The Phase I project benefits from collaboration with

the Orientation and Mobility Department of the Massachusetts Commission for the Blind and the

primary co-developer of Talking Signs.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-81

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Massachusetts

A Voice-Enabled Discussion Forum for the Disabled

WebNet Services

45 Chicory Road

Westford, MA 01886

lmotiwalla@msn.com

Principal Investigator: Luvai F. Motiwalla, PhD

Public Contact: 978/996-9536; Fax: 978/250-2519

Project Number: H133S050061

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 05 $74,987

Abstract: Online discussion forums are often considered good surrogates for classroom interaction.

While online discussion forums are relatively easy to use for people with good visual and motor skills,

they are complicated for people with visual disabilities or motor skill disabilities that limit keyboard and

mouse use. Speech or voice recognition technology such as text-to-speech technology and interactive

voice response technology has the potential of overcoming these user interface deficiencies. This

project’s goal is to develop Web access technology, through a customized speech recognition application and related systems, which promotes access for people with disabilities to discussion forums in the

educational environment. A voice-enabled discussion forum application for students with disabilities

integrates commercially available speech engine software, the Nuance Voice PlatformTM, with another

commercially available online discussion forum, vBulletinTM.
3-82 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Minnesota

A System for Indoor Navigation to Assist the Visually Impaired

Koronis Biomedical Technologies Corporation

16077 Baywood Lane

Eden Prairie, MN 55346-2409

Principal Investigator: Patrick Lichter 612/730-1091

Project Number: H133S050044

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $75,000

Abstract: The objective of this phase I project is to establish the feasibility of creating a small, lowcost input device that provides position and orientation information suitable for an indoor personal

navigation device. This system contains two types of components: a body worn navigation device and

a set of communication/location nodes. The body worn navigation device wirelessly interfaces to the

communication/location nodes obtaining current location and navigation information. The communication system consists of coordinate reference nodes and a base-station node. These nodes are placed

around the building’s perimeter. They enable the system to locate the position of the body worn navigation device and serve as data repeaters. This new technology has the capability to track locations

inside buildings without any special building infrastructure.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-83

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Minnesota

Thermal Imaging as an Aid for the Blind

Advanced Medical Electronics Corporation

6901 East Fish Lake Road, Suite 190

Maple Grove, MN 55369

ghavey@ame-corp.com

Principal Investigator: Gary Havey

Public Contact: 763/463-4814, 104

Project Number: H133S050093

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $75,000

Abstract: The ability of a person to interact socially is an important factor for integration and independence in educational settings, the workplace, and recreational activities. A blind person or an individual

with significant visual impairments must rely solely on verbal or other audio cues to identify the

locations of people and group activities. Groups of several people in a classroom or meeting setting are

difficult to track dynamically. At social events such as parties, spectator sports, and stage presentations

the ability to sense individual activities is important to full participation. The simple task of finding a

seat in a crowded school cafeteria or auditorium can be difficult for a blind person to do independently.

This project develops a device to allow a blind person or individual with significant vision impairment

to sense the location and movements of people in the immediate area. This device utilizes a new, low

cost, and miniature thermal imaging sensor technology to detect the relative warmth of people and

present the information to the user via a haptic, touch sensitive, interface. This greatly simplifies the

problem of quickly identifying people in a scene. The image scene is sensed as a two-dimensional

picture composed of pixels. Each pixel represents the temperature of the corresponding optical target.

A simple thermal threshold can be set to identify pixels in the range of human body temperature.
3-84 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Minnesota

Powered Device Mounting and Positioning Technology for People with

Disabilities

Blue Sky Designs, Inc.

540 Fairview Avenue, North; Suite 207

St. Paul, MN 55104

dianne@blueskydesigns.us

http://www.blueskydesigns.us

Principal Investigator: Dianne Goodwin

Public Contact: 651/603-0828; Fax: 651/917-0137

Project Number: H133S050122

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $74,996

Abstract: This project results in a powered device mounting and positioning system which enables

individuals with severe physical limitations to reposition devices independently from a bed, wheelchair,

or workstation via switch, joystick, or voice input. The design expands on a low effort positioning

system. Where the low effort system has internal mechanisms, which lock and release the joints,

modules replace them to convert it to a powered system, with motor and gear assemblies moving a

device from one position to another. A programmable controller allows customization of the system,

coordinating arm movements to reposition the device to custom-chosen positions. Powered tilt and

height adjustment modules are in development. The system design is extremely modular, with an a la

carte selection of components resulting in a commercially available “custom” mounting system. A

person can choose from powered, low effort, or friction-based positioning mechanisms for the arm and

tilt components. Single or dual arm assemblies may be built, and tilt and height adjustment modules

are optional. This technology provides independent access to electronic devices, work surfaces, trays,

books, food, drinks, and more for individuals with very significant limitations.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-85

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

New York

Expanding The DAISY-NISO Standard for Digital Talking Books to

Include Interactive Talking Tactile Illustrations

Touch Graphics

330 West 38th Street, Suite 1204

New York, NY 10018

sl@touchgraphics.com

http://www.touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 212/375-6341; Fax: 646/452-4211

Project Number: H133S050072

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $74,919

Abstract: This project studies the feasibility of incorporating interactive talking tactile illustrations in

digital talking books that have been carried out in conformance with the DAISY/NISO specification,

for use by blind and low vision readers. The project adapts an existing Braille book that includes tactile

graphic illustrations to the proposed new format, in which specially prepared plastic sheets that include

raised-line and textured illustrations are placed onto a touch-sensitive computer device known as the

Talking Tactile Tablet. Readers navigate the text and, at appropriate moments, explore relevant illustrations by touching them, then press on various parts to hear appropriate audio descriptions of the parts

of the image that they pressed. Blind and low vision participants are asked to read a traditional Braille

book, and then an interactive audio-tactile version of the same book; researchers then compare a

number of measures, including comprehension, retention, and reader satisfaction, to determine whether

the proposed approach merits further investigation.
3-86 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

New York

Web-enabled Creation and Distribution of Audio Tactile Maps

Touch Graphics

330 West 38 Street, Suite 1204

New York, NY 10018

sl@touchgraphics.com

http://www.touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 212/375-6341; Fax: 646/452-4211

Project Number: H133S050117

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 05 $74,941

Abstract: This project develops a new system called the TMAP Reader. TMAP, developed by the

Smith Kettlewell Eye Research Institute, is a website where a person who is blind or has visual impairments can enter any address or intersection in the US; the remote server computer generates a file

containing information needed to produce a tactile map of the place in question and sends it back to the

user who can then output it to a Braille embosser. The TMAP system, which is free to the user, is of

potentially huge significance to a person with a print disability who desires to learn about a new

neighborhood in conjunction with orientation and mobility training, or simply in advance of independent travel in a new place. Touch Graphics, Inc. has developed a Talking Tactile Tablet to be used in

conjunction with maps created by the TMAP website to allow users to learn place names by pressing

on tactile features on the map surface to cause associated information to be spoken aloud. This simple

addition to the TMAP concept makes it possible for people of all skill levels to use these maps, including those who cannot see well enough to use print maps, but who lack Braille literacy skills that are

traditionally required to benefit meaningfully from tactile maps. Furthermore, with the addition of a

refreshable Braille display, deaf-blind individuals could also access these materials, providing them

with crucial information about the world around them.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-87

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

New York

Diabetes Communications for the Disabled

Med Graph, Inc.

53 Glenside Way

Rochester, NY 14612

Principal Investigator: Ed Schlueter 585/453-9437

Project Number: H133S050011

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $74,600

Abstract: This project demonstrates the feasibility of using a web-enabled, interactive telecommunications system to collect, interpret, and communicate diabetic monitoring information for people with

disabilities. The system is also designed to assist in reducing secondary conditions for people with

diabetes through improved monitoring compliance. The Life Improvement Portal System incorporates:

(1) collection and correlation of relevant health behaviors, (2) “transparent” automated data collection,

(3) incorporation of subjective data, (4) use of ordinary telephone system (rather than PCs or PDAs),

(5) visual summation of relevant data, and (6) an interactive communications system. This project

works in conjunction with the University of Buffalo Rehabilitation Engineering Research Center

(RERC), the Diabetes-Endocrinology Center of Western New York (DECWNY), and the University

of Rochester Center for Future Health (URMC/CFH).
3-88 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

North Carolina

Mainstreaming Web Accessibility: Making it Cost-Effective, Userfriendly, and Attractive to Non-Technical Audiences

Universal by Design, LLC

5505 Rush Springs Court

Raleigh, NC 27617

info@websitemojo.com

Principal Investigator: Neesha Mirchandani

Public Contact: 919/696-4531; Fax: 914/470-9563

Project Number: H133S050170

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 05 $75,000

Abstract: This project develops a product that improves web accessibility and makes it cost-effective

and attractive to non-technical audiences. Universal by Design tests and evaluates the usefulness and

effectiveness of the resulting prototype, eliciting key issues including, but not restricted to, key user

interface, technical features, and functionality.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-89

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Texas

Study on Feasibility of a Design for the Development of a Web-based

Audit, Certification, and Remediation System for Accessibility of

Websites

Perceptive Sciences Corporation

9015 Mountain Ridge Drive, Suite 220

Austin, TX 78759

kelly.terry@perceptivesciences.com

http://www.perceptivesciences.com

Principal Investigator: Kelly Terry

Public Contact: 866/987-2253; Fax: 512/474-0005

Project Number: H133S050146

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 05 $75,000

Abstract: This project researches and designs a comprehensive Web-based audit, certification, and

remediation system for accessibility of Web sites. In this Phase I project, research is focused on developing a regional pilot program to determine feasibility. The expected result is a legally defensible audit

procedure, delivery capability, and related “trust mark” that would objectively determine compliance

with the US Federal Government’s “Section 508” accessibility requirements, as well as other critical

accessibility standards addressing a range of disabilities, something that is not currently available from

any other known source. As with a financial audit, the accessibility audit will increase public confidence that Web sites that pass the audit procedure and display a related “trust mark” are in fact accessible by people with disabilities.
3-90 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Texas

Increasing Mobility Through Advanced Power Sources for Assisted

Mobility Devices

Lynntech, Inc.

7607 Eastmark Drive, Suite 102

College Station, TX 77840

jeremy.steinshnider@lynntech.com

http://www.lynntech.com

Principal Investigator: Jeremy Steinshnider, PhD

Public Contact: 979/693-0017; Fax: 979/694-8536

Project Number: H133S050028

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $75,000

Abstract: This project develops a hybrid power system based on a modular fuel cell design. With their

higher energy densities, fuel cells have many advantages over batteries as a power system such as:

longer range, higher power, lighter weight, faster recharge, no special charging/discharging schedules,

and lower life cycle cost. This design is especially suited for use in wheelchairs and scooters because

of its size, ease of maintenance, and safety. This research also has potential for automotive, aerospace,

telecommunications, and military applications.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-91

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Virginia

Learner-Controlled Beginning Sign Language Instruction for Children

Ready! Set! Sign! ! LLC

4319 South 36th Street

Arlington, VA 22206-1809

contact_us@readysetsign.com

http://www.readysetsign.com

Principal Investigator: Daniel D. Burch, PhD

Public Contact: Martin Noretsky, PhD 703/820-5730; Fax: 703/820-0022

Project Number: H133S050035

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 05 $75,000

Abstract: This purpose of this project is to design a learner-controlled learning environment in which

hearing children can acquire sign language skills to communicate with their deaf and hard-of-hearing

classmates for whom sign language is their primary means of communication. Ready! Set! Sign!!

(RSS) is an SBIR-funded sign language instructional product, effective with adults and youth in their

late teens, its original target population. However, to be effective with young children based on principles of constructivist learning theory, RSS needs to become much more learner-centered and learnercontrolled. Educational practices that follow from this constructivist focus are designed to facilitate

children’s learning by nurturing their own active cognitive abilities. To accomplish this end, a supportive environment, one in which learners can create their own ideas, must be provided through the

provision within RSS of a resource-rich, activity-based curriculum for learning.
3-92 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Arizona

Development of Collapsible Folding Manual Wheelchair - Phase II

Three Rivers Holdings, LLC

1826 West Broadway Road, Suite 43

Mesa, AZ 85202

david@3rivers.com

http://www.3rivers.com

Principal Investigator: Chris Willems

Public Contact: David Boninger 480/833-1829; Fax: 480/833-1837

Project Number: H133S030016

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $247,048; FY 04 $252,848; FY 05 $0 (No-cost extension through 9/30/

2006)

Abstract: In the first phase, this project designed, built, and conducted bench-top testing of a compact,

forward-folding, ultralight manual wheelchair with an innovative design that incorporates “swingdown” access wheels for navigation in confined areas. This facilitates access to narrow environs such

as those encountered in compact dwellings, offices, restrooms, and transportation settings. When using

the access wheels, the wheelchair also fits down the aisle of airplanes and collapses to be stowed in the

overhead compartment. The prototype has an adjustable axle, adjustable backrest and seat angle, and a

folding design that acts like a rigid frame. Testing of the prototype confirmed that it met or exceeded

ANSI/RESNA standards, and it performed equivalently or better than other comparable ultralight

manual wheelchairs on those standards. In the second phase, the project: (l) continues to make design

improvements to further maximize functionality and ease of use, (2) verifies that the new design meets

ANSI/RESNA standards, (3) has wheelchair users evaluate the prototype after use in an Activities of

Daily Living Course, and (4) has users take the chair home for an extended trial-use period that allows

for an in-depth evaluation of the prototype wheelchair and allows users to compare the prototype with

their personal wheelchair on a wide variety of dimensions.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-93

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Arizona

Development of a Lightweight Adjustable, Modular Pediatric

Wheelchair

Three Rivers Holdings, LLC

1826 West Broadway Road, Suite 43

Mesa, AZ 85202

chris@3rivers.com

Principal Investigator: Chris Willems 480/833-2541

Public Contact: David Boninger 480/833-1829; Fax: 480/833-1837

Project Number: H133S050134

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $287,208

Abstract: Pediatric wheelchair users experience rapid physical growth and rapidly changing cognitive

and functional skills that create unique needs that are underserved by currently available pediatric

wheelchairs. In Phase I, the project designed and constructed a prototype tilt-in-space wheelchair

called the PALM (pediatric, adjustable, lightweight, and modular) that is specifically designed to meet

pediatric needs. Phase II project goals include: (1) To further refine the design of the PALM, (2) verify

functionality of the prototype through end-user testing and evaluation on an Activities of Daily Living

Course, and (3) conduct two-week take-home trials that allow for in-depth evaluation of the PALM in

the natural environment of the end-user and allow parents and children to compare the PALM with the

child’s own wheelchair on a wide variety of dimensions. The final result is to create a tilt-in-space

pediatric wheelchair that can meet the unique needs of a growing child, can provide all the desired

features of an optimal daily-use pediatric wheelchair, and can also be manufactured at low cost so that

it can be made widely available to the pediatric populations in the US and international markets.i:
3-94 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Arkansas

Absolute Head Tracking for Accessing Assistive Devices

InvoTek, Inc.

1026 Riverview Drive

Alma, AR 72921

tjakobs@invotek.org

http://www.invotek.org

Principal Investigator: Thomas Jakobs

Public Contact: 479/632-4166; Fax: 479/632-6457

Project Number: H133S030165

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 03 $267,458; FY 04 $232,542; FY 05 $0 (No-cost extension through 9/30/

2006)

Abstract: This research develops a new absolute head-tracking strategy for people who require an

assistive device to manipulate a computer cursor. This absolute system links the position of a computer

cursor to the direction in which the user’s head is pointing, and stays aligned with the user’s head

regardless of repositioning movements. This system enables a user to guide a cursor aiming his or her

head at a desired target location, simplifying the task of learning and utilizing such a system. The

design takes advantage of a low-cost infrared camera, and requires only three passive sensors to be

attached to the user.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-95

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

California

Automated Closed Captioning

Automatic Sync Technologies

4460 Quicksilver Court

Hayward, CA 94542

kevin@automaticsync.com

http://www.automaticsync.com/caption

Principal Investigator: Kevin Erler, PhD

Public Contact: 510/582-3437; Fax: 510/582-3437

Project Number: H133S040129

Start Date: October 01, 2004

Length: 24 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $249,971; FY 05 $249,789

Abstract: The goal of this project is to produce an automated captioning system that provides significant advantages in cost, turnaround time, and convenience. The project applies automatic speech

processing techniques to the automation of captioning. The limitations of speech recognition as commonly found in commercial applications, which must rely on pre-defined grammars that must try to

anticipate anything that can be said, or on training to individual speakers, are circumvented using

program transcripts to focus on alignment and segmentation in closed captioning display. This tightly

constrains the problem domain, and avoids high error rates associated with fully automated recognition. The Phase I prototype showed the feasibility of automating captioning using this approach. In

Phase II, the project completes research and development and incorporates enhancements based on

trial feedback, including more sophisticated acoustic models robust to real-world data, an improved

user interface, performance upgrades based on new user data, and search and indexing capabilities.
3-96 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Colorado

Job Quest, an Internet-based, Self-directed Career Exploration and

Assessment System For Students and Adults with Significant

Intellectual

AbleLink Technologies, Inc.

528 North Tejon Street, Suite 100

Colorado Springs, CO 80903-1158

dan@ablelinktech.com

http://www.ablelinktech.com

Principal Investigator: Daniel K. Davies

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S040137

Start Date: October 01, 2004

Length: 24 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $250,000; FY 05 $250,000

Abstract: This project develops and evaluates Job Quest, an Internet-based, self-directed multimedia

career exploration and assessment system for improved job placement of students and adults with

mental retardation. The Job Quest system: (l) facilitates self-directed exploration of jobs and job tasks

via a media-enriched computer environment using digital pictures, audio, and video; (2) enables job

developers to identify jobs that match the individual’s job interests through automated searching of the

Department of Labor’s O*NET jobs database; and (3) provides the ability for job developers and

employment specialists to customize the content of the system to represent specific jobs which
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-97

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Florida

Multimedia Literacy Software for Deaf or Hard-of-Hearing, and Visual

Learners

Vcom3D, Inc.

3452 Lake Lynda Drive, Suite 260

Orlando, FL 32817

eds@vcom3d.com

http://www.vcom3d.com

Principal Investigator: Edward Sims 407/737-7370

Public Contact: Fax: 407/737-6821

Project Number: H133S050137

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 05 $249,436

Abstract: Persons who are Deaf or hard of hearing (D/HH) have difficulty learning to read and write

proficiently. Over the last decade, several software screen readers and literacy tools have been developed for persons with blindness and learning disabilities. However, to date, none of these tools has

incorporated features and functions that specifically target the needs of the (D/HH) population. This

project is developing a fully functional Multimedia Literacy Software (MLSW) program that addresses

the needs of D/HH, as well as other students, and identifies the best uses of the MLSW in the instruction of reading skills. The creation of a multimedia module presents a highly detailed representation of

an animated human that can: Speak selected words and text segments, while demonstrating correct

mouth movement to form speech sounds; automatically translate English text into Signed English,

which may be viewed with or without accompanying speech; and provide ASL or Signed English

definitions of selected English words. The prototype MLSW and the supporting instructional materials

serve as the basis for a commercial software product that may be stand-alone or licensed and bundled

with currently available and evolving assistive reading and writing software.
3-98 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Maryland

StoryTiles: Programmable Manipulatives to Improve Language,

Sequencing, Theory of Mind, and Play Skills in Children with Autism

Intelligent Automation, Inc.

15400 Calhoun Drive

Rockville, MD 20855

smayhew@i-a-i.com

http://www.i-a-i.com

Principal Investigator: Shannon Beltz Mayhew

Public Contact: 301/294-5230; Fax: 301/294-5201

Project Number: H133S040132

Start Date: October 01, 2004

Length: 24 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $250,000; FY 05 $250,000

Abstract: This project develops and field tests StoryTiles, a device with programmable manipulatives

that foster language, sequencing, theory of mind, and play skills among children with autism. Children

can to use this device to experiment with storytelling, and in doing so, work with sequencing, creative

play, and language structures as they manipulate programmable, tangible objects. In this effort, IAI

conducts a study using a prototype in a preschool classroom to determine ways StoryTiles can be used

for special needs inclusion activities within a mainstream classroom. Software and device designs are

improved, and researchers build 15 Phase II StoryTiles devices with accompanying story publishing

software. In addition, IAI works with Laureate Learning, Inc. to integrate their language learning

software with StoryTiles. IAI also conducts focus group with therapists, teachers, and parents of

children with autism to produce material for a StoryTiles instructional guide. Finally, IAI conducts field

tests with children with autism to determine the educational effectiveness of the Phase II device.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-99

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Maryland

Delivery of Cost-effective, Real-time, Remote Transcription Services

Institute for Disabilities Research and Training, Inc.

11323 Amherst Avenue

Wheaton, MD 20902

carl@idrt.com

http://www.idrt.com

Principal Investigator: Carl J. Jensema, PhD 301/942-4326

Public Contact: 301/942-4326; Fax: 301/942-4439

Project Number: H133S050129

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 05 $249,999

Abstract: This project focuses on establishing a low-cost, school-operated, remote real-time transcription service for students with disabilities using speech recognition technology, off-the-shelf equipment,

and commonly available software. Phase I demonstrated the feasibility of this concept. In Phase II, the

concept is expanded and refined through a transcription service for students with disabilities. The

developed training materials are used to develop a commercial product that allows other school systems to set up transcription services for students with disabilities.
3-100 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Massachusetts

Natural Language Speech Access of Computers by the Disabled

Amazability, Inc.

14 Lorraine Circle

Waban, MA 02468

amazability@rcn.com

http://www.amazability.com

Principal Investigator: Kenneth R. Ingham, PhD

Public Contact: 617/795-0134

Project Number: H133S030005

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $219,595; FY 04 $249,564; FY 05 $0 (No-cost extension through 3/31/

2006)

Abstract: This project implements a natural language processor to facilitate complex interactions and

to make the overall system readily usable by the computer non-literate or non-technical. The Phase I

work confirmed that a speech-based set of complex applications, using automatic speech recognition

for command and control, could be effectively used by people with visual impairments. Mechanisms

were implemented and tested that allowed users to avoid becoming lost owing to any form of interruption. The work showed that, while simple commands could be successfully recognized, longer complex commands were more difficult because users tended to lose their place while assembling their

precise syntax. Therefore, the design and implementation of a natural language processor to support

the issuing of complex instructions was indicated. In this phase, the automatic speech recognition

subsystem is improved in accordance with the results of the Phase I work and its vocabularies increased to approximately 120,000 words composed of dynamically variable 50,000 word language

models. The resulting large vocabulary recognition system, supporting natural language interaction is

evaluated through focus group and human subject testing. The Adept 1, equipped with a natural

language processor, can serve as a universal reading system for multipart documents (digital, analog,

hypertext, etc.). As an integrated voice-based system, it can also support web access, email, and word

processing, thereby becoming a universal access tool for reading and writing. By providing very large

vocabulary automatic speech recognition and natural language processing of commands, the technical

nature of the computer system is minimized.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-101

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

New York

Development of an Authoring Tool to Allow Teachers to Create AudioTactile Materials for Blind and Visually Impaired Students

Touch Graphics

330 West 38 Street, Suite 1204

New York, NY 10018

sl@touchgraphics.com

http://www.touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 212/375-6341; Fax: 646/452-4211

Project Number: H133S030036

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $232,243; FY 04 $242,006; FY 05 $0 (No-cost extension through 12/31/

2005)

Abstract: This project focuses on the design, implementation, and evaluation of an authoring tool that

allows teachers to create customized audio-tactile educational materials for students who are blind, or

have other visual or print disabilities. Teachers create raised-line and textured graphic imagery on premade templates sheets, place these sheets on a touch-sensitive device connected to a computer, and

program the graphic with descriptive audio “tags.” Later, a student interacts with the system by pressing regions and shapes on the tactile surface to instigate appropriate audio responses. The goals of this

project are: (1) creation of a market-ready suite of software applications for creating, reading, and

transferring teacher-produced audio-tactile courseware; (2) a software sharing website to encourage

wide-scale adoption of the authoring tool product and to proliferate the teacher-generated materials; (3)

findings on the potential for adapting a variety of methods for producing tactile graphic images to the

authoring tool system; (4) a complete braille tutorial application as a demonstration of the system’s full

capabilities, ready for distribution via Internet; (5) results of a large scale evaluation of teacher-produced audio-tactile materials in the United States and in selected foreign countries; and (6) investigation of the potential for the authoring tool system to be adapted for use in the transcription of entire

illustrated textbooks and full-scale curricula.
3-102 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

New York

Visual – Spatial Math Problem Solving Strategy Intervention on a

Handheld Wireless Device for Math Disabilities in Inclusive Classrooms

Learnimation, LLC

53 West 90th Street #4

New York, NY 10024

http://www.learnimation.com

Principal Investigator: Sarah Manning 212/496-7536

Project Number: H133S050167

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $251,261

Abstract: This project builds and evaluates a universally designed, handheld/wireless educational

software intervention that trains students with learning disabilities (LD) and their teachers to use a

metacognitive strategy for translating mathematical word problems into visual-spatial schematic models. This intervention is based on the prototype created in Phase I. Phase I research suggests that a

universally designed, research-based, handheld-based, visual-spatial metacognitive strategy technique

offers great promise as a cost-effective mathematics intervention for students with LD. The resulting

commercial software product will improve the capacity for mainstream teachers to assist students with

LD in reaching their full potential in mathematics.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-103

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

North Dakota

Disability Access

Spirit Lake Consulting, Inc

P.O. Box 663; 314 Circle Drive

Fort Totten, ND 58335

annmaria@spiritlakeconsulting.com

http://www.spiritlakeconsulting.com

Principal Investigator: AnnMaria Rousey DeMars 310/717-9089

Public Contact: 310/717-9089

Project Number: H133S050165

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 05 $237,315

Abstract: Phase I of this project combined software and on-site training program for persons with

disabilities and their families who lack the usual prerequisites for success in computer-based learning.

The Phase II project is expanding the prototype of computer-based instruction created in Phase I into

an empirically validated commercial product. The project’s technical objectives are: (1) The development of a unique virtual school house model to meet the identified needs of individuals with disabilities

and their families living in remote, disadvantaged communities, and (2) the empirical assessment of the

impact of training using this model for different demographic groups and under different training

conditions. Testing is conducted on reservations serving Sioux, Chippewa, and the Three Affiliated

Tribes.
3-104 NIDRR Program Directory FY 2005 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Pennsylvania

Universal Access to Passenger Rail

Marshall Elevator Company

2015 Mary Street

Pittsburgh, PA 15203

Lvanroosmalen@marshallelevator.com

Principal Investigator: Linda van Roosmalen, PhD

Public Contact: Rob Jamison 412/431-1340

Project Number: H133S050136

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $249,825

Abstract: Freight rail shares train tracks with passenger rail cars. The differences in car width result in

horizontal gaps between passenger rail cars and boarding platforms. This gap creates safety hazards

not only for wheelchair users but also for the elderly, for individuals with visual impairment, and even

for other passengers boarding rail cars. This project continues the research on the Phase I prototype

QuickRampTM. Phase II activities optimize QuickRamp’sTM strength, durability, and drive mechanisms; and evaluate the system for safety and usability. This technology provides a universal solution

to the rail access problem and solves platform-to-rail car access for all potential rail passengers including individuals using wheeled mobility, children, individuals with visual impairment, and the elderly.

Additionally, it eliminates rail personnel assistance for individuals with disabilities boarding or exiting

trains, ensuring passenger independence for all train riders.
NIDRR Program Directory FY 2005 - Technology for Access and Function 3-105

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Texas

Development of a Nemeth Math to Latex Backtranslator System

Logical Solutions Software

8200 Chambray Court

Plano, TX 75025

deepa_gopal@hotmail.com

http://www.logicalsoft.net

Principal Investigator: Deepa Gopal

Public Contact: 972/390-7329; Fax: 972/390-7329

Project Number: H133S050160

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 05 $249,500

Abstract: Phase II project objective is to extend and enhance the prototype developed in Phase I to

obtain a reliable, robust, and complete software environment for backtranslating mathematical documents (containing mathematical expressions coded in Nemeth Math code as well as regular text coded

in ASCII Grade 2 Braille) to Latex. This project is conducting research on: (1) automatic detection and

recovery from errors in the Math document encountered during backtranslation; (2) automatic identification of parts of the documents that contain text, mathematics, and spatial arrangements respectively;

and (3) allowance for hard copy input via Optical Braille Recognition. The system greatly facilitates

students, scientists, and engineers with visual impairments to communicate with their sighted instructors and colleagues.

Participation and Community Living

NIDRR's focus on participation follows the stated purpose of independent living

programs to promote a philosophy of independent living, including a philosophy of

consumer control, peer support, self-help, self-determination, equal access, and

individual and system advocacy, in order to maximize the leadership, empowerment,

independence, and productivity of individuals with disabilities, and the integration

and full inclusion of individuals with disabilities into the mainstream of American

society. NIDRR sponsors research to improve knowledge of individual- and

societal-level factors that may serve as barriers to, or facilitators of, participation

among all people with disabilities.

Contents

Rehabilitation Research and Training Centers (RRTCs) ............................................. 1

Disability and Rehabilitation Research Projects ......................................................... 11

Field Initiated Projects (FIPs) ..................................................................................... 14

Small Business Innovative Research (SBIR), Phase I ............................................... 34

Small Business Innovative Research (SBIR), Phase II .............................................. 35

NIDRR Program Directory FY 2005 - Participation and Community Living 4-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center on Personal Assistance

University of California, San Francisco

Department of Social and Behavioral Sciences

3333 California Street, Suite 455

San Francisco, CA 94118-0612

pas@ucsf.edu

http://www.pascenter.org

Principal Investigator: Charlene Harrington, PhD, RN 415/476-4030

Public Contact: 866/727-9577; 415/502-7190 (V); 415/502-5216 (TTY); Fax: 415/476-6552

Project Number: H133B031102

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $900,000; FY 04 $900,000; FY 05 $900,000

Abstract: This project provides research, training, dissemination, and technical assistance on issues of

personal assistance services (PAS) in the United States. Center projects focus on: (1) the relationship

between formal and informal PAS and caregiving support, and the role of AT in complementing PAS;

(2) policies and programs, barriers, and new models for PAS in the home and community; (3)

workforce development, recruitment, retention, and benefits; and (4) workplace PAS models that

eliminate barriers to formal and informal PAS and AT at work. The Center is based at the University of

California, San Francisco, and includes the Topeka Independent Living Resource Center, InfoUse, the

Paraprofessional Healthcare Institute, the Institute for the Future of Aging Services, as well as

faculty-ð: members at the University of Maryland, Baltimore County Policy Sciences Graduate Program, the West Virginia University Job Accommodation Network, and the University of Michigan’s

Institute of Gerontology and the Department Health Management and Policy. A Blue Ribbon Advisory

Committee of PAS users, disability advocates, business leaders, independent living center leaders, and

academics provide guidance to the project.
4-2 NIDRR Program Directory FY 2005 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Florida

Rehabilitation Research and Training Center for Children’s Mental

Health

University of South Florida

Florida Mental Health Institute

13301 Bruce B. Downs Boulevard MHC2335

Tampa, FL 33612-3807

kutash@fmhi.usf.edu

http://rtckids.fmhi.usf.edu

Principal Investigator: Robert Friedman, PhD 813/974-4640

Public Contact: Krista Kutash, PhD 813/974-4661 (V); Fax: 813/974-6257

Project Number: H133B040024

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $835,000; FY 05 $835,000

Abstract: The Research and Training Center Children’s Mental Health conducts an integrated set of

research projects designed, in the short run, to enhance knowledge about effective implementation of

systems of care, and, in the long run, to make it possible for children with serious emotional disturbances to live, learn, work, and thrive in their own communities. The Center has developed a theory of

factors that contribute to effective implementation; within that theory is a strong emphasis on the

importance of understanding from a systemic perspective the interrelationship between the different

factors, and their relationship to the community culture and context in which a service delivery system

exists. The Center has a set of six interconnected research projects that use both quantitative and

qualitative methods, and are holistic in their focus, to further test and develop its theory. The Center

translates new knowledge from research into change in policy and practice through a targeted program

of training, consultation, technical assistance, publication, and dissemination. To support these efforts,

the Center maintains dissemination partnerships with a range of organizations committed to help

present research findings in formats well-suited for key audiences of state and local policy makers,

family organizations, researchers, and representatives of related service sectors.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Aging with

Developmental Disabilities

University of Illinois at Chicago

Department of Disability and Human Development MC 626

College of Applied Health Sciences

1640 Roosevelt Road

Chicago, IL 60608-6904

rrtcamr@uic.edu

http://www.uic.edu/orgs/rrtcamr

Principal Investigator: Tamar Heller, PhD 312/413-1537

Public Contact: Alan Factor, Associate Director 800/996-8845 (V); 312/413-1510 (V); 312/413-0453

(TTY); Fax: 312/996-6942

Project Number: H133B031134

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 03 $750,000; FY 04 $749,998; FY 05 $750,000

Abstract: The mission of the RRTCADD is to have a sustained beneficial impact on the health and

community inclusion of adults with intellectual and developmental disabilities (I/DD) as they age

through a coordinated set of research, training, and dissemination activities. Major goals are: (1)

improving health and function of adults with I/DD, (2) enhancing caregiving supports and transition

planning among older caregivers and other family members, and (3) promoting aging and disability

friendly environments that enable adults with I/DD to participate in community life. Each goal is

addressed through coordinated and complementary sets of activities within the core areas. Projects

promoting health and functioning include: examination of age-related changes, epidemiological surveys, research on health care utilization, and development of community-based health promotion

interventions. To enhance caregiving supports and transition planning, RRTCADD research includes

epidemiological surveys on family demographic and health characteristics, including families of

minority backgrounds and families of persons with dual diagnoses of I/DD and psychiatric impairments; sibling roles and interventions in transition planning; and consumer direction in family support.

Projects examining aging and disability-friendly environments include research to identify features of

communities and residences that hinder and assist community integration as people with I/DD age,

state policies regarding nursing home use, and dementia care in family homes and other community

residences. Training and dissemination activities involve collaborations with national provider, professional, and consumer organizations to enhance skills and to promote progressive interventions and

policies.
4-4 NIDRR Program Directory FY 2005 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Full Participation in

Independent Living

The University of Kansas

Research and Training Center on Independent Living

1000 Sunnyside Avenue; Room 4089 Dole Center

Lawrence, KS 66045-7555

rtcfpil@ku.edu

http://rtcfpil.org

Principal Investigator: Glen W. White, PhD 785/864-4095

Public Contact: 785/864-4095 (V); 785/864-0706 (TTY); Fax: 785/864-5063

Project Number: H133B000500

Start Date: January 01, 2001

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $499,876; FY 02 $661,864; FY 03 $626,364; FY 04 $499,876; FY 05 $0

(No-cost extension through 12/31/2006)

Other Funding: FY 02 $299,999 (NIDRR Dissemination & Utilization)

Abstract: Through research, training, and dissemination, this project makes available person-environment strategies that enable full participation in society by persons with disabilities from diverse cultures, varying socioeconomic strata, and emerging disability populations. This mission is implemented

through multiple research and training activities that are influenced by independent living (IL) philosophy and values; for example, participatory action research is emphasized, in which consumers take an

active role throughout the research process. The RRTC develops, tests, and uses measurement tools to

investigate the interactional relationship between personal and environmental factors and their effects

on full participation in IL by the designated populations. Based on the project’s Analytical Research

Framework, the four core areas of intervention development and testing include: (1) increasing the

knowledge base about the emerging universe of disability, (2) community participation and wellness,

(3) cultural IL accommodations, and (4) personal and systems advocacy.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center Recovery and Recovery

Oriented Psychiatric Rehabilitation for Persons with Long Term

Mental Illness

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

mfarkas@bu.edu; erogers@bu.edu

http://www.bu.edu/cpr/research/rtc2004/

Principal Investigator: Marianne Farkas, ScD; E. Sally Rogers, ScD 617/353-3549

Public Contact: E. Sally Rogers, ScD 617/353-3549; Fax: 617/353-7700

Project Number: H133B040026

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $750,000; FY 05 $750,000

Abstract: This project focuses on the concepts and dimension of recovery and the various factors that

inhibit and facilitate recovery from long-term mental illness by a comprehensive and meritorious set of

research projects and training, technical assistance, and dissemination activities. The research and the

training, dissemination, and technical assistance programs are organized into the following three

programmatic areas of investigation and development: concepts and dimensions of recovery; factors

enhancing recovery, and factors inhibiting recovery. The research projects are designed to have an

impact on the field at multiple levels, including the personnel level as well as the program and system

levels. Research projects use a participatory research process with significant input from consumers

and other stakeholders, and culminate in dissemination, training, or technical assistance activities to

maximize the input of the research program. The Training, Dissemination, and Technical Assistance

(TDTA) projects are designed to provide exposure, experience, and expertise levels of knowledge

transfer. The TDTA program produces new technologies in recovery and psychiatric rehabilitation, as

well as increases the likelihood that researchers, service providers, and others use the cumulative

knowledge developed by the RRTC. The RRTC is tied together by its programmatic focus on three

specific core areas, strengthened by the use of appropriate research strategies, and assisted by a vigorous program of training, technical assistance, and dissemination activities designed to maximize the

impact of the RRTC at all levels in the field of psychiatric rehabilitation.
4-6 NIDRR Program Directory FY 2005 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Minnesota

Research and Training Center on Community Living (RTC/CL)

University of Minnesota

The Institute on Community Integration

204 Pattee Hall, 150 Pillsbury Drive, SE

Minneapolis, MN 55455

lakin001@umn.edu

http://rtc.umn.edu

Principal Investigator: Charlie Lakin, PhD 612/624-5005

Public Contact: Sheryl Larson, PhD 612/625-6024; Fax: 612/625-6619

Project Number: H133B031116

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 03 $750,000; FY 04 $750,000; FY 05 $750,000

Other Funding: FY 04 $1,340,000 FY 04 $300,000 (Administration on Developmental Disabilities),

$70,000 (Centers for Medicare and Medicaid Services), $295,000 (NIDRR Field Initiated Projects),

$300,000 (Illinois Planning Council on Developmental Disabilities), $25,000 (Centers for Disease

Control and Prevention, Center on Birth Defects and Developmental Disabilities), $300,000 (College

of Direct Support web-based training program), $30,000 (Partners in CommunitySupports), $60,000

(University of Minnesota)

Abstract: The Center conducts research, training, technical assistance, and dissemination to enhance

inclusion and self-determination of citizens with intellectual and developmental disabilities (ID/DD).

The research program has six outcome areas: policy studies, database supports for full participation,

self-determination and consumer-control, workforce development, and quality assessment and improvement systems. The research program within the priority areas includes: (1) research syntheses of

the state of knowledge and practice; (2) secondary analyses of high quality, topically relevant national

and state data sets; (3) case studies of best practices; (4) evaluation of demonstration efforts to improve

policy and practice; (5) survey and interview studies of critical issues; and (6) group process studies

with key constituencies. An integrated intramural training program addresses the development of

skilled disability researchers and community service professionals. Outreach training programs provide

training and technical assistance to agencies and individuals providing support to people with ID/DD,

including members of their families. The College of Direct Support provides on-line interactive multi

media training to thousands of direct support professionals across the US. Outreach programs include

conferences and workshops for a wide variety of national, regional, and state audiences, a state-of-theart conference, annual “Reinventing Quality” conference, and intensive technical assistance with

community organizations, including advocacy and self-advocacy organizations. The Center disseminates practical information to targeted audiences through its internal publication program that includes:

IMPACT, Policy Research Brief, DD Data Brief, and Frontline Initiative. It maintains high standards

for scholarly productivity and publication through books, journal articles and technical reports. About

18,000 people visit Center websites each month for access to view publications or other information on

best practices in person-centered services (“QualityMall.org”), national statistics on services and

expenditures, the direct support workforce, and other contemporary topics.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Traumatic Brain

Injury Interventions

Mount Sinai School of Medicine

Research and Training Center

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

http://www.mssm.edu/tbinet

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372 (V); 212/241-8978 (TTY); Fax: 212/348-5901

Project Number: H133B040033

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 04 $700,000; FY 05 $700,000

Abstract: The research program includes two randomized clinical trials (RCTs) and two projects

supportive of better everyday interventions and better research: Research Study 1 (R1) is an RCT of a

treatment for depression: cognitive behavioral therapy, adapted to address the unique cognitive and

behavioral challenges of people with TBI that often pose barriers to treating depression, a major factor

in reducing post-TBI quality of life, is compared to supportive therapy. In R2, a second RCT, a standard day treatment program is compared to a similar program (Executive Plus), augmented with

modules to improve executive functioning and attention training. R3, Support for Evidence-Based

Practice, evaluates all published research on post-TBI interventions and assessment of outcomes; it

serves as a national resource for disseminating the results. It also implements three participatory action

research-based analyses of high priority areas, including meta-analyses if appropriate. In addressing

improved outcome measurement, R4 focuses on the PART instrument, a measure of participation

currently being tested within eight TBI Model Systems. R4 focuses on creating a subjective approach

to serve as a complement to the PARTu:’s current focus on objective assessment. A major focus of the

RRTC is placed on capacity building of clinical and research professionals to address the need for

better day-to-day interventions in the lives of people with TBI. Often their medical needs are misread,

their brain injury goes unidentified, and they find services and accommodations inappropriate. Capacity building focuses on students early in their educational career - to help shape career choice and

points of view; graduate and post-graduate students; and practicing “gate keepers” in the community,

primarily psychologists and physicians.
4-8 NIDRR Program Directory FY 2005 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center for Community

Integration for Individuals with Disabilities, Strengthening Family and

Youth Participation in Child and Adolescent Mental Health Services

Portland State University

Regional Research Institute; School of Social Work

P.O. Box 751

Portland, OR 97207-0751

gordonL@pdx.edu

http://www.rtc.pdx.edu

Principal Investigator: Barbara Friesen, PhD 503/725-4166

Public Contact: Lyn Gordon, Associate Director for Training and Technical Assistance 503/725-

4114; Fax: 503/725-4180

Project Number: H133B040038

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $835,000; FY 05 $835,000

Abstract: This project conducts research, training, and technical assistance activities to study and

promote effective, community-based, culturally competent, family-centered, individualized, and

strength-based services for children and youth with emotional or behavioral disorders and their families. Projects include: (1) “Community Integration (CI) of Transition-Age Youth,” designed to gain

understanding of CI and related concepts from the perspectives of transition-age youth, young adults,

and caregivers; (2) “Transforming Futures: Research on Expanding the Career Aspirations of Youth

with Mental and Emotional Disorders,” features a web-based intervention connecting youth with adult

mentors, employed in a variety of fields, who have experienced mental illness; (3) “Partnerships in

Individualized Planning” develops an intervention to increase youth and family member participation

in the individualized service planning process, a conceptual framework for understanding recovery in

childrenpl:’s mental health, and ways to reduce stigma; (4) “Work-Life Integration” addresses CI for

adult caregivers of children and youth with emotional disorders, specifically around maintaining

employment. It is designed to influence human resource professionals’ practice, and aims to reduce

stigma and increase organizations’ family friendliness; (5) “Transforming Transitions to Kindergarten”

focuses on the preschool-kindergarten transition for young children with challenging behaviors. It

develops and tests an intervention promoting children’s successful school entry while empowering

caregivers; (6) “Practice-Based Evidence: Building Effectiveness from the Ground Up,” conducts a

case study in partnership with a Native American youth organization and the National Indian Child

Welfare Association, and addresses the need to study practices that are believed to be helpful, but for

which little evidence exists.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-9

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Pennsylvania

Rehabilitation Research and Training Center Promoting Community

Integration of Individuals with Psychiatric Disabilities

University of Pennsylvania

Collaborative on Community Integration

3535 Market Street, 3rd Floor - CMHPSR

Philadelphia, PA 19104

pennrrtc@mail.med.upenn.edu

http://www.upennrrtc.org

Principal Investigator: Mark Salzer, PhD

Public Contact: Katy Kaplan 215/746-6713; Fax: 215/349-8715

Project Number: H133B031109

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $749,212; FY 04 $749,816; FY 05 $749,803

Abstract: The goal of this Center is to insure that people with psychiatric disabilities not only move

from institutional care to more integrated settings but also are free to choose to participate in a wide

range of roles in their communities. The Center’s five year mission focuses on three core areas: (1)

Factors Associated with Community Integration develops a coherent conceptual framework for community integration and identifies key factors, intervention models, and appropriate instrumentation and

research methodologies; (2) Policies Associated with Community Integration identifies, develops, and

assesses the effectiveness of a range of public policies and system strategies promoting community

integration and engage key stakeholders in learning about and utilizing the Center’s findings; and (3)

Intervention Supports that Assist Community Integration identifies, develops, and assesses the effectiveness of support service interventions promoting community integration, and provides training,

technical assistance, and dissemination based on those initiatives to change behaviors and practices of

key stakeholders. This Center capitalizes upon the longstanding history of collaboration among three

Philadelphia-based central partners: The University of Pennsylvania, the peer-operated Mental Health

Association of Southeastern Pennsylvania, and The Matrix Center at Horizon House, Inc.
4-10 NIDRR Program Directory FY 2005 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Texas

Rehabilitation and Training Center on Community Integration of

Persons with TBI

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

2455 South Braeswood

Houston, TX 77030

asander@bcm.tmc.edu; struchen@bcm.tmc.edu

http://www.tbicommunity.org

Principal Investigator: Angelle M. Sander, PhD; Margaret Struchen, PhD

Public Contact: 713/383-5644 (Sander); 713/383-5645 (Struchen)

Project Number: H133B031117

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 03 $799,960; FY 04 $799,968; FY 05 $799,936

Abstract: The research program of this project includes: development and evaluation of a social

network mentoring program; an investigation of racial/ethnic differences in acceptance of disability,

community integration needs, barriers, and supports; a distance learning program to train family members in rural areas as paraprofessionals; assessment of employers’ attitudes toward persons with TBI

and a pilot educational intervention to reduce attitudinal barriers in the workplace; a randomized

clinical trial to assess the effectiveness of a brief substance abuse intervention; a qualitative exploration

of intimacy following TBI; and a study investigating the role of social communication abilities and

environmental factors on social integration. Training projects include: a National Information, Educational Resources, Dissemination, and Technical Assistance Center for the Community Integration of

Individuals With TBI; development of educational materials for increasing community awareness of

TBI and reducing attitudinal barriers; adoption of a social action network program from disability

studies for improving positive identity; partnering with artists in the community to implement a Center

for Creative Expressions for Persons with TBI; training of community healthcare professionals in the

community integration needs of persons with TBI; a rehabilitation fellowship in community integration

of persons with TBI; and a state-of-the-science conference and book on community integration.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-11

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Iowa

Asset Accumulation And Tax Policy Project

University of Iowa College of Law

Law, Health Policy, and Disability Center

100 Gilmore Hall

Iowa City, IA 52242

peter-blanck@uiowa.edu

http://disability.law.uiowa.edu/lhpdc/projects/assetdevtaxpol.html

Principal Investigator: Peter D. Blanck, PhD, JD 319/335-9043

Public Contact: Michael Morris, JD; James Schmeling, JD 319/335-9043; 202/521-2930 (Morris);

319/335-8458 (Schmeling); Fax: 319/335-9764

Project Number: H133A031732

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 03 $299,991; FY 04 $299,991; FY 05 $299,991

Abstract: This project develops and disseminates a new and comprehensive body of knowledge to

multiple target audiences nationwide to improve the economic independence, social empowerment,

and community integration of persons with disabilities. Researchers examine systematically the relationship between tax policy and asset accumulation for persons with disabilities, and resultant improvements in economic and community integration. The project investigates the impact of multiple intervention strategies—including financial education, matched savings accounts, expanded financial

services, and increased use of state and Federal tax incentives for asset and community economic

development—in six states and ten pilot demonstration sites nationwide on youth in transition and

adults with disabilities. This project is a collaborative effort of The Law, Health Policy, and Disability

Center at the University of Iowa College of Law, Southern New Hampshire University School of

Community Economic Development, the National Federation of Community Development Credit

Unions, the World Institute on Disability, and the National Cooperative Bank Development Corporation.
4-12 NIDRR Program Directory FY 2005 - Participation and Community Living

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Kansas

The Impact of Interventions on Self-Determination and Adult

Outcomes

University of Kansas

Kansas University Center on Developmental Disabilities/Beach Center on Disability

1200 Sunnyside Avenue, Room 3136

Lawrence, KS 66045-7534

wehmeyer@ku.edu

http://www.beachcenter.org

Principal Investigator: Michael Wehmeyer, PhD (University of Kansas); Laurie Powers, PhD

(Oregon Health Sciences University) 785/864-7605

Public Contact: 785/864-0723; Fax: 785/864-3458

Project Number: H133A031727

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $299,313; FY 04 $299,967; FY 05 $299,616

Abstract: This project conducts three semi-longitudinal, national studies examining the impact of

interventions to promote the self-determination of students with high incidence and low incidence

disabilities, and students who are at-risk for less desirable adult outcomes on student self-determination,

adult outcomes, and quality of life. In all three studies, participants receive instruction for several years

(with annual measurements) and adult outcomes are measured during the next two years, post-high

school. The first study focuses on students with learning disabilities, mild intellectual disabilities, and

emotional/behavioral disorders. The second study focuses on students with moderate to severe intellectual disabilities, multiple disabilities, and severe autism. The third study focuses on students with

disabilities from foster systems or juvenile justice systems. For the school-based studies of students

with learning disabilities and mental retardation, participating school campuses are randomly assigned

to treatment conditions. An alternate treatment-control group design ensures that each site obtains

training in self-determination related supports, but one level of training does not involve direct instruction with students. Research follow-up in the first and second years post-high school for all study

participants will yield information about the impact of services and instruction using self-determination

and student involvement during high school and in transition services on the study sample. This

investigation will provide a firm evidence base for student-directed learning and self-determination in

school and community resource settings.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-13

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Oregon

Identification and Reporting of Violence By People with Disabilities

Oregon Health and Science University

School of Nursing

3181 SW Sam Jackson Park Road

Portland, OR 97201

powersl@pdx.edu; oschwald@pdx.edu

http://selfdeterminationohsu.org

Principal Investigator: Mary Ann Curry 503/494-8655

Public Contact: Mary Oschwald, PhD 503/725-9602; Fax: 503/725-4180

Project Number: H133A031724

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $300,000; FY 04 $300,000; FY 05 $300,000

Abstract: The purpose of this project is to reduce the prevalence of violence against people with

disabilities. People with disabilities are at substantially higher risk for violence, abuse, and criminal

victimization than the general population. The identification and reporting of violence typically involves individuals’ self-identifying as victims and accessing safety and reporting information and

resources, as well as the availability of sensitive and accessible reporting methods. The goal of this

project is to improve the identification, reporting, and response to violence against persons with disabilities living in the community by: (1) validating the efficacy of a culturally sensitive approach to

promote violence screening, safety behaviors, disclosure and reporting by women with disabilities; (2)

increasing knowledge of the extent to which current crime reporting methods incorporate disability

status and accommodation information, and the barriers faced by police jurisdictions across the nation

in documenting and facilitating crime reporting by persons with disabilities; and (3) identifying practices and policies that promotes and support violence disclosure and reporting by individuals with

disabilities.
4-14 NIDRR Program Directory FY 2005 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Arizona

The Texas Trilingual Initiative: Providing Effective Communication for

Persons who are Deaf or Hard of Hearing and Hispanic

University of Arizona

National Center for Interpretation

MLB #67, Room 345

Tucson, AZ 85721

pgatto@email.arizona.edu

http://nci.arizona.edu

Principal Investigator: Roseann Gonzalez, PhD; Paul Gatto, CPhil

Public Contact: Paul Gatto, CPhil 520/621-3615; Fax: 520/624-8130

Project Number: H133G040115

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 04 $149,957; FY 05 $149,957

Abstract: The Texas Trilingual Initiative is an innovative and efficient Trilingual Interpreter Certification Program that addresses an under-recognized “trilingual” language barrier (American Sign Language (ASL), English, and Spanish) that affects deaf and hard of hearing Hispanics. This barrier

presents access problems for deaf and hard of hearing Hispanics, who may use only ASL but must

communicate with both English and Spanish speakers, often at the same time. This trilingual language

barrier often affects Hispanic deaf and hard of hearing children who learn ASL in school, but whose

parents speak Spanish and whose service providers speak English. Providing access to critical educational, health, legal, and social services requires interpreters who can competently bridge these three

differing cultures and languages. This certification program—to be conducted in partnership with the

Texas Department of Assistive and Rehabilitative Services - Division for Deaf and Hard of Hearing

Services — includes the development, piloting, and validation of beginning and advanced level trilingual interpreting certification tests to assess interpreting capability from Spanish/English to ASL and

ASL to Spanish/English.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-15

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Curriculum on Abuse Prevention Education (CAPE)

World Institute on Disability

510 16th Street, Suite 100

Oakland, CA 94612-1502

marsax@wid.org

http://www.wid.org

Principal Investigator: Marsha Saxton, PhD

Public Contact: 510/251-4349; Fax: 510/763-4109

Project Number: H133G050321

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $149,670

Abstract: The goal of this project is to reduce the incidence of abuse of people with disabilities receiving personal assistance in the community, through educating service providers and people with disabilities about abuse awareness and abuse prevention strategies. The CAPE curriculum is comprised of one

volume with two sections: (1) a curriculum on abuse prevention for providers, and (2) a workbook for

consumers. The curriculum explores fundamental issues of abuse, best-practices training approaches,

and personal narratives of successful abuse interventions. The workbook offers highly motivational

learning resources relevant to daily life, such as learning games, cartoons, and empowering quotes

from people with disabilities. This mixed-media volume also includes one- or two-page modules for

providers to easily adapt the learning activities for use at disability community events, rehabilitation

sessions, and independent living training.
4-16 NIDRR Program Directory FY 2005 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Total Community Immersion Model for Postsecondary-Age Students

with Significant Disabilities: An Outcome-Based Approach to

Transition

San Francisco State University

Department of Special Education

1600 Holloway Avenue

San Francisco, CA 94132

ncerto@sfsu.edu

Principal Investigator: Nicholas Certo, PhD

Public Contact: 415/338-2503; Fax: 415/338-0566

Project Number: H133G020184

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05 $0 (No-cost extension

through 9/30/2006)

Abstract: This project develops, implements, and evaluates a Total Community Immersion Model for

transitioning students who are 19 and 20 years old from several metropolitan school districts in San

Francisco Bay Area. The Oakland Unified School District, and other Bay Area School Districts in

collaboration with San Francisco State University, have spent the last three years establishing the

Transition Service Integration Model, which has produced a seamless transition to adulthood by

integrating services with adult service providers functioning as receiving agencies and the rehabilitation

and developmental disability systems at the point of transition. However, that model focuses exclusively on the needs of pending graduates, that is, 21-year-old students during their last year of school,

and could benefit from receiving students with well-developed preferences for community living and

employment. A new model, developed through this research, eliminates the use of a fixed school site

and develops initial work and non-work activities that facilitate inclusion into each individual’s neighborhood, as well as other communities in Oakland and the metropolitan Bay Area.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-17

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Florida

RAICES/Promotoras

University of South Florida

Louis de la Parte Florida Mental Health Institute

13301 Bruce B. Downs Avenue

Tampa, FL 33612

callejas@fmhi.usf.edu

http://cfs.fmhi.usf.edu/cfsnews/2003news/RAICES.htm

Principal Investigator: Mario Hernandez, PhD 813/974-4651

Public Contact: Linda M. Callejas 813/974-4651; Fax: 813/974-7563

Project Number: H133G030014

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $149,992; FY 04 $149,948; FY 05 $149,992

Abstract: RAICES/Promotoras develops and tests a method of service provision that integrates a

model known as Promotoras with a locally funded school-linked case management approach known as

the Family and School Support Team (FASST). FASST provides school and in-home services for

children and their families funded through the Children’s Board of Hillsborough County. The

RAICES project targets at-risk limited English speaking and Spanish monolingual Latino children or

those with serious emotional disturbance enrolled in grades K-5 and their families in rural south

Hillsborough County, Florida. The project also targets service providers and school personnel that

serve Latino families. “Raices,” or “roots,” symbolizes building healthy school and family ties upon

the foundations present within the family and community. Promotoras, or community educators, are

community members who use their knowledge of local resources and their neighborhood’s health and

social issues to promote healthy living and help community residents access needed health and social

services. Case management programs such as FASST face challenges in identifying, mobilizing, and

sustaining informal resources to support families. The Promotoras model offers a vehicle to make

needed modification of local services through development of more culturally competent methods for

linking and engaging Latino families with FASST and schools.
4-18 NIDRR Program Directory FY 2005 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Enabling Self-Determination for People Living with AIDS

University of Illinois at Chicago

Department of Occupational Therapy

M/C 811, 1919 West Taylor Street

Chicago, IL 60612

kielhfnr@uic.edu

Principal Investigator: Gary Kielhofner, PhD; Brent Braveman, PhD 312/996-4973 (Keilhofner);

312/355-2656 (Braveman)

Public Contact: Fax: 312/413-0256

Project Number: H133G020217

Start Date: January 01, 2003

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $149,032; FY 03 $149,337; FY 04 $149,764; FY 05 $0 (No-cost extension

through 12/31/2006)

Abstract: This project implements and studies a model program of peer-facilitated, empowermentoriented services for people with AIDS within five supportive living facilities. The facility-based

program provides individualized and group services that are tailored to each client’s needs and provides clients with necessary environmental supports. The program also empowers clients to access

additional resources and services that support their self-determination. This model program, Enabling

Self-Determination, is initially offered to clients in three supportive living facilities. Researchers study:

(1) the independent living, employment, and community participation outcomes of the model program,

and (2) the three facilities’ efforts to sustain the program. This condition is compared to a control group

comprised of individuals from two other facilities who receive basic educational services. Participatory

research methods are used to identify potential obstacles and solutions to program implementation and

efficacy, and to evaluate how the services impact upon and are viewed by the clients. Researchers

work closely with the two control group facilities to build their capacity to implement the model

program. In this way, the five transitional living facilities in Chicago that serve persons with AIDS are

empowered to sustain the Enabling Self-Determination program. Finally, the project creates extensive

resources for program replication and vigorously disseminates the model program so that communitybased supportive living facilities can replicate the program nationwide.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-19

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Homeless Mentally Ill: Strategies for Maintaining Residential Stability

University of Illinois at Chicago

Department of Occupational Therapy

1919 West Taylor Street, M/C 811

Chicago, IL 60612-7250

helfrich@uic.edu

Principal Investigator: Christine Helfrich, PhD 312/996-0942

Public Contact: 312/996-4626; Fax: 312/413-0256

Project Number: H133G040320

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 04 $149,976; FY 05 $149,994

Abstract: This project implements, evaluates, and disseminates a life skills intervention designed to

increase skills necessary for maintaining housing for 230 homeless adults with psychiatric disabilities

to prevent their return to the streets, reinstitutionalization, hospitalization, or jail. These skills include

room and self-care management, food management, financial management, and safe community

participation. This three-year project is conducted in two housing programs: supervised emergency

housing and single room occupancy housing with case management. The intervention was developed

based on Empowerment Theory, the Transtheoretical Model of Change, Social Learning Theory using

a skills training approach, and the Model of Human Occupation. The objective of this intervention is to

increase the time an individual remains housed and decrease the evictions that occur secondary to his/

her inability to perform the skills and behaviors necessary to maintain housing.
4-20 NIDRR Program Directory FY 2005 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Pathways in Living: Increasing Mental Health Consumers’ Community

Integration Through Peer-Led Education

University of Illinois at Chicago

Center on Mental Health Services Research and Policy

104 South Michigan Avenue, Suite 900

Chicago, IL 60603

pickett@psych.uic.edu

Principal Investigator: Susan Pickett-Schenk, PhD

Public Contact: 312/422-8180, ext. 17; Fax: 312/422-0740

Project Number: H133G050217

Start Date: November 01, 2005

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $150,000

Abstract: This study examines the effectiveness of the Pathways in Living (PIL) peer-led education

course, an eight-week curriculum that uses the Pathways to Recovery self-help workbook in increasing

mental health consumers’ ability to identify and pursue the self-determined life goals that enable them

to lead full lives within the community. In PIL, trained instructors who are mental health consumers

teach other consumers how to identify their strengths, set and achieve goals, and expand their social

networks. A total of 336 mental health consumers in Chicago participate in the project. A wait-list

control group design is used in which 168 participants are randomly assigned to the PIL course (intervention group) and 168 participants are assigned to a nine-month course waiting list (control group).

Study participants complete three in-person interviews that assess social support; emotional well-being;

feelings of empowerment, hope, and self-stigma; and identification and pursuit of self-chosen goals.

Intervention and control group participants are interviewed at the same three timepoints: one month

prior to the start of the PIL course for the intervention group (study baseline for the control group), at

the end of the PIL course (three months post-baseline for the control group); and six months after the

course has ended (eight months post-baseline for the control group). Randomized regression models

and content analyses are used to examine whether any significant differences on the above measures

occur between the groups and are maintained over time. Study results provide important information

on how peer-led programs increase community integration of mental health consumers.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-21

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Indiana

Integrating Assertive Community Treatment (ACT) and Illness

Management and Recovery (IMR) for Clients with Severe Mental

Illness (SMI)

Indiana University Purdue University Indianapolis (IUPUI)

Department of Psychology/ACT Center

Roudebush VA Medical Center

1481 West 10th Street (11H)

Indianapolis, IN 46202

mpsalyer@iupui.edu

http://psych.iupui.edu/ACTCenter

Principal Investigator: Michelle P. Salyers, PhD

Public Contact: 317/554-0000 ext. 4419; Fax: 317/554-0114

Project Number: H133G030106

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $149,458; FY 04 $149,559; FY 05 $149,900

Abstract: This project targets the subgroup of 20 percent of consumers with severe mental illness

identified with the most severe disabilities, that is, the subgroup most often excluded from rehabilitation

services and mental health treatment. The project involves: (1) the systematic integration and highfidelity implementation of two evidence-based practices for consumers with severe mental illness:

assertive community treatment and illness management and recovery; (2) enhancing integration by

employing a consumer specialist on treatment teams in a well-defined role; and (3) providing the first

empirical test of a comprehensive package of techniques designed to help consumers learn to manage

their own illness and foster recovery. Outcome measures include achievement of recovery goals, such

as competitive employment and independent living, as well as indicators of illness management, such

as prevention of hospitalization.
4-22 NIDRR Program Directory FY 2005 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Stress and Coping over the Life Course: A Perspective on Women with

Spinal Cord Injury

University of Michigan

Physical Medicine and Rehabilitation

Rehabilitation Psychology

325 East Eisenhower Parkway Suite 100

Ann Arbor, MI 48108

dgtate@umich.edu

http://www.med.umich.edu/pmr/

Principal Investigator: Denise G. Tate, PhD

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133G020060

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $149,995; FY 03 $149,999; FY 04 $149,997; FY 05 $0 (No-cost extension

through 11/30/2005)

Abstract: This investigation describes the challenges to independent living faced by women with SCI

and the strategies they use to manage the stresses of everyday life. The ratio of men to women who

sustain SCI is approximately four to one, with current national prevalence of women estimated to be

36,900. Much of the research on SCI has focused on men and may not reflect the experiences of

women with SCI. Even more than their male counterparts, women with SCI endure multiple minority

status, poverty, lack of education, job discrimination, and restricted choices, and are often burdened by

extra care-taking responsibilities, all of which may elevate their risk for stress-related disorders. This

study: (1) documents, from a contextual life perspective, the ways women with SCI perceive and

respond to stressful life events; (2) explores, in depth, effective and ineffective ways of coping; and (3)

assesses the impact these strategies have on quality of life.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-23

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Community Participation After Spinal Cord Injury: Idioms of Beliefs

and Behaviors

Wayne State University

Institute of Gerontology

87 East Ferry Street

Knapp Building, Room 231

Detroit, MI 48202

c.lysack@wayne.edu

http://sci.iog.wayne.edu/

Principal Investigator: Catherine Lysack, PhD

Public Contact: 313/577-2297; Fax: 313/875-0127

Project Number: H133G020151

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 02 $149,959; FY 03 $149,974; FY 04 $149,539; FY 05 $0 (No-cost extension

through 9/30/2006)

Abstract: This study identifies and describes the self-defined forms of community and the modes of

community participation found meaningful to persons living with SCI. The five specific aims are to:

(1) discover and describe the self-defined forms of community that people with SCI envision and

pursue in daily life; (2) identify and describe the cultural and individual idioms of beliefs and behaviors

by which people with SCI create a sense of identification and participate in personally valued communities; (3) identify the barriers to participation in desired communities, and strategies and techniques (if

any) that persons with SCI use to overcome these barriers; (4) compare and contrast persons in two

groups (new onset SCI and more longstanding duration) in terms of the forms of community, idioms of

identification, and strategies used to overcome barriers and achieve meaningful community participation; and (5) evaluate preliminary qualitative hypotheses about the nature and modes of community

participation actually envisioned by persons with SCI themselves.
4-24 NIDRR Program Directory FY 2005 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Driving after Stroke

Wayne State University

Department of Psychology

5057 Woodward Avenue, 7th Floor

Detroit, MI 48202

rapport@sun.science.wayne.edu

Principal Investigator: Lisa J. Rapport, PhD

Public Contact: 313/577-7879; Fax: 313/577-7636

Project Number: H133G050134

Start Date: November 01, 2005

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $149,392

Abstract: The purpose of the study is to evaluate driving after stroke. Cessation of driving is among

the most functionally disabling consequences of stroke. Driving is integral to independence, community membership, and activities of daily living such as access to work, shopping, and health care. The

primary target population is adults who drove a motor vehicle prior to the onset of a stroke. The study

samples 150 pairs of survivors and their significant others, recruited at inpatient discharge and from the

outpatient clinic of an urban rehabilitation hospital. Barriers to driving, driving status, and community

integration are assessed at six months post stroke. A subsample of 90 survivors who seek to resume

driving is also given a comprehensive driving evaluation. The objectives of this study are to identify

the barriers to driving after stroke and the extent to which these barriers influence driving status (i.e.,

decision to drive), actual driving risk, and community integration. The project outcomes identify

barriers to driving that are unwarranted or remediable and facilitate decision-making based on valid

information, both of which are important to improving functional mobility and adaptation to changes

associated with stroke. The long-term goal is the development of interventions that maximize independence and community integration, while protecting public and survivor safety.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-25

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Minnesota

National Training Institute for Frontline Supervisors (NTIFF)

University of Minnesota

Institute on Community Integration

214B Pattee Hall, 150 Pillsbury Drive, SE

Minneapolis, MN 55455

larso072@umn.edu

http://rtc.umn.edu/ntiffs/main/index.asp

Principal Investigator: Sheryl Larson, PhD 612/624-6024

Public Contact: Nancy McCulloh 612/626-7765; Fax: 612/625-6619

Project Number: H133G030058

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: This project refines, tests, and delivers a national train-the-trainer and technical assistance

model to assist community organizations that provide supports and services to persons with developmental and other severe disabilities to recruit, retain, and train direct support and frontline supervisor

staff members. The model includes: (1) assisting organizations to assess their recruitment and retention

challenges; (2) providing web-based training on recruitment and retention strategies; (3) conducting 2

intensive train the trainer institutes for 10-15 organization representatives; (4) supporting organizational

representatives to provide training to 70-100 frontline supervisors; (5) providing on-site as well as

remote technical assistance support and training to organizational representatives; (6) supporting

technical assistance efforts by organizational representatives for frontline supervisors; (7) supporting

ongoing follow-up measurement to assess the effectiveness of interventions and to guide future intervention work; and (8) developing project products and reports to share the project outcomes with

policy makers, provider organizations, and other interested persons.
4-26 NIDRR Program Directory FY 2005 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

A Longitudinal Study of Psychosocial Outcomes and Subjective Quality

of Life Many Years After Traumatic Brain Injury

Mount Sinai School of Medicine

Department of Physical Medicine and Rehabilitation

One Gustave Levy Place, Box 1240

New York, NY 10029-6574

marcel.dijkers@mssm.edu

Principal Investigator: Marcel Dijkers, PhD

Public Contact: 212/659-8587; Fax: 212/348-5901

Project Number: H133G030026

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $149,999; FY 04 $149,999; FY 05 $149,999

Abstract: This project is a longitudinal study of individuals with TBI who are on average 18 years

post-injury. Between 1994 and 1997, the Research and Training Center on the Community Integration

of Individuals with TBI at Mount Sinai School of Medicine conducted extensive quality of life and

health interviews with over 800 individuals with TBI, spinal cord injury (SCI) and no disability (NO).

The researchers for the current project will re-interview these same individuals eight to nine years after

their initial interview, using most of the original measures. This project has three main objectives: (1) to

document long-term psychosocial functioning post-TBI and its change over time; (2) to examine

longitudinally subjective quality of life post-TBI as a primary indicator of adjustment to TBI; (3) to

determine the predictors of change in subjective quality of life. The comparison groups provide a

means of examining whether the changes observed in individuals with TBI reflect the unique experience of living with a TBI, the broader experience of living with a disability (comparison with the SCI

group), or the general challenges we all face in conducting our daily lives (comparison with the NO

group). Results of the study are disseminated through public conferences for both professionals and

consumers, through publications in journals for consumers and professionals, and through the development of reports specifically targeted to individuals with TBI.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-27

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

North Carolina

Participation in Family, School, and Community Activities as Pathways

to Adult Integration Study

Orelena Hawks Puckett Institute

128 South Sterling Street

Morganton, NC 28655

scarswell@puckett.org

Principal Investigator: Carol M. Trivette, PhD 828/432-0065

Public Contact: Sharon Carswell 828/432-0065

Project Number: H133G050164

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $149,980

Abstract: This project examines the factors that promote or impede successful inclusion of youth with

disabilities in postsecondary education, employment, and social activities. The specific goals for this

study are: (1) To determine the extent to which the frequency of participation in family, school, and

community activities promotes the integration and inclusion of young adults with disabilities into the

work force as well as educational and social opportunities; (2) to determine the extent to which the

scope of participation in school, community, and family activities promotes the integration of young

adults with disabilities into the work force as well as educational and social opportunities; (3) to disseminate research findings to the appropriate institutions, professional organizations, and parent groups

in such a way that implications of practice are highlighted. Both quantitative and qualitative methodology are used as part of this research design to assess the influences of participation in everyday family,

school, and community life during preschool, elementary school, and secondary school, and the

interactions between these sets of predictor variables that influence post-secondary adult outcomes.
4-28 NIDRR Program Directory FY 2005 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Ohio

Teen Online Problem Solving for Pediatric Brain Injury

Children’s Hospital Medical Center

Pediatric Rehabilitation

3333 Burnet Avenue; MLC 4009

Cincinnati, OH 45229-3039

shari.wade@cchmc.org

Principal Investigator: Shari L. Wade, PhD 513/636-7480

Public Contact: Fax: 513/636-7360

Project Number: H133G050239

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $149,629

Abstract: Traumatic brain injury (TBI) in adolescents is a significant stressor for both the teen and his

or her family. Existing interventions are rare and distance and finances can restrict access to treatment.

The current project addresses these needs by developing and piloting an innovative online intervention

for adolescents with TBI (Teen Online Problem Solving: TOPS). The TOPS intervention is adapted,

based on input from teens with TBI, from a recently developed online program for school-aged children with TBI and their families. The project tests the TOPS intervention in a randomized trial comparing the effects of usual care to TOPS on the following outcomes: (1) Adolescent problem-solving and

communication skills; (2) adolescent emotional/behavioral adjustment; (3) parent burden and distress;

and (4) parent-teen conflict. TOPS makes use of emerging technology to address the multifaceted

needs of teens following TBI with the goal of improving the teen’s social and emotional functioning,

thereby enabling him or her to better negotiate the complex transition to adulthood and independent

functioning.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-29

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Resilience in Students with TBI: A Longitudinal Investigation

Western Oregon University

Teaching Research Division

99 West 10th Avenue, Suite 370

Eugene, OR 97401

anng@oregon.uoregon.edu

Principal Investigator: Ann E. Glang, PhD

Public Contact: 541/346-0594; Fax: 541/346-0599

Project Number: H133G030179

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $149,950; FY 04 $149,999; FY 05 $149,966

Abstract: The project extends the work of Project PSO, a project investigating post-secondary outcomes for young adults with TBI, tracking this sample into their early 20s, a time when the subjects are

making significant life adjustments in the areas of post-secondary education, employment, independent

living, and interpersonal relationships. The Project’s quantitative and qualitative data reveal that some

of the 92 subjects appear to be resilient, achieving successful post-injury adjustments, while others are

experiencing difficulty, becoming dependent on family members for instrumental and social support.

The data suggest that access to specific types of educational interventions and support services account

for these differences in adjustment. In addition, this project investigates factors that facilitate and

impede delivery of services and support to young adults with TBI from key agencies, including VR,

Social Security Administration, and state social service agencies serving individuals disabilities.
4-30 NIDRR Program Directory FY 2005 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

Stability of Vocational Interests Two Years after Spinal Cord Injury:

Relationship with Employment, Participation, and Subjective WellBeing

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

Research Office

19 Hagood Ave, Suite 910; PO Box 250822

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-1107

Project Number: H133G030151

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $149,944; FY 04 $149,913; FY 05 $149,352

Abstract: The primary objectives of this study are to identify how much interests change in the first

two years after SCI onset, factors related to change, and the extent to which interest type and interest

change are associated with employment, participation, and subjective well-being. Return to gainful

employment has been widely endorsed as fundamental rehabilitation goal after the onset of a SCI, yet

employment rates for people with SCI rarely exceed 30 percent. This high unemployment rate is

generally attributed to the dramatic impact of SCI on ability to perform job functions requiring physical

strength and dexterity. However, successful employment is related to both the extent to which the

individual is able to perform the needed job functions and the degree to which the job environment and

job tasks are intrinsically interesting to the individual. Unfortunately, research has shown that SCI often

occurs selectively to people whose interests are in physically challenging activities that may no longer

possible given the physical limitations imposed by SCI. The impact of no longer being able to perform

intrinsically rewarding activities not only poses a threat to successful return to work, but also to overall

participation in society and subjective well-being. By helping rehabilitation professionals to better

understand the relationships of both interest type and interest stability with employment, participation,

and well-being, this study lays a foundation for intervention strategies that maximize opportunities for

participation and help people with SCI to lead fulfilling and rewarding lives.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-31

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Outpatient Social Skills Training For Distressed Adolescent Burn

Survivors

University of Texas Medical Branch

815 Market Street

Galveston, TX 77550

pblakene@utmb.edu

Principal Investigator: Patricia E. Blakeney, PhD; Walter Meyer, MD 409/770-6718

Fax: 409/770-6718

Project Number: H133G050079

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $150,000

Abstract: Previous studies suggest that a significant number of survivors of pediatric burn injuries

have a diminished quality of life as young adults. Based on social learning theory and supported by

empirical data, social skills deficits have been identified as a major impediment to maximum psychosocial adjustment for many who have survived serious burn injury; this deficit is a particular handicap as

the child progresses through adolescence. A pilot study suggests that a four-day, intensive, residential

social skills training program was of benefit to troubled teen burn survivors even one year after the

training program was completed. The residential format, however, is expensive and impractical. This

project (1) cross-validates previous findings that a social skills training program is beneficial, i.e. results

in improved social competence and/or diminished behavioral problems, at one-year post-intervention;

and (2) tests the hypothesis that beneficial effects can be maintained or amplified by modifying the

format of the training to a schedule that more closely resembles the usual outpatient clinical schedule.

The goal of this project is to develop and validate an efficient and relatively inexpensive intervention

that can be utilized not only by burn-care teams but by healthcare professionals in other specialties that

are concerned with assisting adolescents who are stigmatized by marred appearance or functional

impairment related to a medical condition.
4-32 NIDRR Program Directory FY 2005 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Depression and Rural Women with Disabilities: Testing a CIL-Based

Self-Management Program

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

Center for Research on Women with Disabilities

6550 Fannin, Suite 1421

Houston, TX 77030

rhughes@bcm.tmc.edu

http://www.bcm.edu/crowd

Principal Investigator: Rosemary B. Hughes, PhD

Public Contact: 713/798-5782; Fax: 713/798-4688

Project Number: H133G030170

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: This project evaluates a depression self-management intervention for reducing and preventing depression in rural women with disabilities, implemented in ten rural centers for independent living

(CIL). Each of the ten CILs identifies two women with disabilities (one CIL staff counselor with a

disability and another woman with a physical disability) to serve as co-leaders for the intervention and

select a licensed mental health professional to intervene with crises and provide resources and referral

services as needed. Approximately 200 women are randomly assigned: 100 to the traditional CIL

services plus an 8-session self-management of depression intervention group, and 100 to the traditional

CIL services-only group. The intervention is designed to increase participants’ understanding and selfmanagement of depression as it relates to experiences of secondary and chronic health problems, stress,

lack of support, chronic pain, and abuse. The goals of this project are to (1) develop and implement a

depression self-management program for women with physical disabilities, including women with

newly recognized disabilities such as chronic fatigue immune deficiency syndrome and fibromyalgia:

and (2) disseminate the findings to rural women with disabilities, rural independent living counselors,

researchers, and mental health service providers.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-33

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Caregiver and Environmental Influences on Outcome for Infants and

Preschoolers with Traumatic Brain Injury

University of Texas Health Science Center at Houston

Department of Pediatrics

7000 Fannin, Suite 2401

Houston, TX 77030

Mary.R.Prasad@uth.tmc.edu

Principal Investigator: Mary R. Prasad

Public Contact: 713/500-3888

Project Number: H133G040279

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 04 $149,225; FY 05 $149,970

Abstract: This project is guided by a transactional model of development which postulates that a

child’s eventual outcome is a result of transactions between the child’s biological risk factors and a

continuum of environmental conditions. Project 1 assesses predictors of outcome in infants and

preschoolers with moderate or severe TBI who are 6 to 47 months of age in relation to socio-demographically matched comparison children. Child behavior, caregiver stress, and family functioning are

expected to have a direct impact on outcome from TBI; however, the effect of brain injury on developmental outcomes is also expected to be partially mediated through the influence of these factors on the

caregiver-child interaction. Project 2 pilots a randomized, controlled, home-based, caregiver-focused

intervention for infants and preschoolers with TBI that enhances caregiver skills for stimulating cognitive development.
4-34 NIDRR Program Directory FY 2005 - Participation and Community Living

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Oregon

Expert Systems for Independent Living: Feasibility of a Residential

Activity Analysis and Information Delivery System for Individuals with

Cognitive Disabilities and Caregivers

Assistech Systems

99 West 10th Avenue, Suite 397

Eugene, OR 97401

Principal Investigator: Thomas Keating, PhD 541/343-3384

Project Number: H133S050095

Start Date: October 01, 2005

Length: 6 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $74,996

Abstract: This project has two goals. The first is to develop and evaluate the feasibility of an expert

systems application that would function as a context aware, activity analysis, and notification application. Second is to identify an agenda for further expert systems development in a Phase 2 proposal.

The project develops of a rule-based expert system for activity pattern analysis and information delivery consisting of Data Inputs, Activity Analysis Module (consisting of Rules Base and Rules Engine),

and Information Outputs. Data inputs include: (1) user-created activity schedules; (2) sensor data; (3) a

facts database of historical activity patterns; and (4) real-time interactivity. The rules engine acquires

input data, applies it to the rules base, and takes actions based on whether presenting facts match rule

conditions. Outputs include prompts, reminders, and critical event notifications to consumer and

caregiver.
NIDRR Program Directory FY 2005 - Participation and Community Living 4-35

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Maryland

Development and Testing of LD/LEP Friendly Computer Textbooks in

Diverse Subjects, Classrooms, and Formats

Visibooks, LLC

47 East 5th Street

Frederick, MD 21701

chris@visibooks.com

http://www.visibooks.com

Principal Investigator: Christopher Charuhas

Public Contact: 301/560-4611; Fax: 208/279-5336

Project Number: H133S030008

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $326,950; FY 04 $155,160; FY 05 $0 (No-cost extension through 9/30/

2006)

Abstract: This project determines if textbooks based on a Phase I prototype help students with learning disabilities and low-English-proficiency (LEP) learn computer subjects better, faster, and easier.

The study also determines if these textbooks are suitable for mainstream students, and if the books are

effective when used in electronic format. Twenty Phase I-type textbooks on common computer subjects are produced and distributed to high school, college, and adult education computer classes containing LD, LEP, and mainstream students. One group of classes uses bound copies, another uses

electronic copies, and a control group uses textbooks currently on the market. At the beginning of the

semester, students in each class take a pre-test to measure existing knowledge. At the end of the semester, they take a post-test to measure what they’ve learned. Test data from two semesters is used to

compare the progress of students in the bound, electronic, and current-book test groups.

Disability Demographics

NIDRR's demographic performance goals are intended to increase the ability to

describe the characteristics and circumstances of people with disabilities and their

family members by: Improving the ability to collect disability data through the joint

development of a standard nomenclature and methodological standards, including

sampling, in collaboration with other Federal and non-Federal entities; enhancing

the understanding of the number and characteristics of people with disabilities

through targeted studies of existing data; and improving the science of disability

demographics by developing and/or improving the measures of the interaction

between technology and the physical environment, the social environment, and

social policy as they affect people with disabilities.

Contents

Rehabilitation Research and Training Centers (RRTCs) ............................................. 1

Disability and Rehabilitation Research Projects ........................................................... 4

Field Initiated Projects (FIPs) ....................................................................................... 5

NIDRR Program Directory FY 2005 - Disability Demographics 5-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Measuring

Rehabilitation Outcomes and Effectiveness

Feinberg School of Medicine

Northwestern University

Center for Rehabilitation Outcomes Research

Rehabilitation Institute of Chicago

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

http://www.ric.org/research/outcomes/rrtc_projects.php

Principal Investigator: Allen W. Heinemann, PhD 312/238-2802

Public Contact: Trudy Mallinson, PhD 312/238-1623; Fax: 312/238-2383

Project Number: H133B040032

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 04 $700,000; FY 05 $700,000

Abstract: The purpose of this RRTC is to provide national leadership on the functional assessment,

outcomes, and health policy issues facing the medical rehabilitation community and the diverse consumers it seeks to serve. The Center conducts research; hosts forums for discussion; publishes in the

rehabilitation, health policy, and consumer literature; trains researchers in rehabilitation-focused health

services research; and disseminates information to diverse consumer, provider, and academic audiences. The RRTC’s research seeks to (1) enable comparison of functional status measures across postacute settings so information can be provided to consumers and other rehabilitation stakeholders about

the outcomes and effectiveness of various post-acute care settings; (2) develop an innovative measure

of community participation in a meaningful, reliable, and valid manner in order to better describe the

long-term outcomes of rehabilitation services; (3) increase the efficiency of outcome data collection so

more resources can be directed to patient care; (4) examine how format and presentation style influences patient understanding of rehabilitation quality outcome indicators in order to provide information

in ways that are helpful for consumers when selecting rehabilitation services. The project uses recent

developments in item response theory and computer adaptive testing and stakeholder input in test

development, outcomes reporting and quality indicator reporting. The expected outcomes are a rational

basis for provision of rehabilitation services post-acute care settings, increased efficiency of data

collection, a better measure of community participation, and outcome reporting that is responsive to

stakeholder needs. Dissemination activities include post-graduate and post-doctoral training opportunities, conferences, and a website that provides information on measurement of rehabilitation outcomes

across the continuum of post-acute settings.
5-2 NIDRR Program Directory FY 2005 - Disability Demographics

Rehabilitation Research and Training Centers (RRTCs)®^: Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Policies Affecting

Families of Children with Disabilities

University of Kansas

Center for Research, Inc.

Beach Center on Disability

Haworth Hall, Room 3136

1200 Sunnyside Avenue

Lawrence, KS 66045-7534

turnbull@ku.edu

http://www.beachcenter.org

Principal Investigator: H.R. Turnbull, LLM; Ann Turnbull, EdD

Public Contact: H. R. Turnbull, LLM 785/864-7600; Fax: 785/864-7605

Project Number: H133B031133

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 03 $749,951; FY 04 $749,960; FY 05 $749,997

Abstract: This center conducts eight research projects on the effects of the policies of governments,

systems, networks, and agencies on the family quality of life and community integration (FQOL/FCI)

of families who have children with developmental disabilities and emotional-behavioral disabilities or

both. Researchers identify four target populations: families, providers, policy-leaders, and networks (all

at the federal, state, and local levels). Three policy challenges are prisms through which the effects of

policy on families can be understood: early intervention, alternative schools, and consumer control of

funding. For each policy challenge, researchers inquire into whether the applicable federal and state

policies and practices, and the applicable network policies, advance FQOL/FCI; whether the policies

across education, social services, and health care are mutually consistent with each other and advance

FQOL/FCI; and whether the practices of agencies in those systems advance FQOL/FCI. The center’s

analytical framework holds that the core concepts shape policies; policies shape services; policies and

services should be coordinated and delivered through partnerships; enhanced FQOL/FCI occurs when

there is coherence among core concepts, coordinated policies delivered through partnerships, and

coordinated services delivered through partnerships; and influencing factors must invariably be taken

into account.
NIDRR Program Directory FY 2005 - Disability Demographics 5-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Demographics and

Statistics

Cornell University

Ives Hall, Room 331

Ithaca, NY 14853

ajh29@cornell.edu

http://www.disabilitystatistics.org

Principal Investigator: Andrew J. Houtenville, PhD

Public Contact: 607/255-5702 (V); 607/255-2891 (TTY); Fax: 607/255-3274

Project Number: H133B031111

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $750,000; FY 04 $750,000; FY 05 $750,000

Abstract: The RRTC on Demographics and Statistics (Cornell StatsRRTC) bridges the divide between the sources of disability data and the users of disability statistics. The project conducts research

exploring the reliability of existing data sources and collection methods, and studies the potential to

improve current and future data collection efforts. In addition, the project utilizes existing data sources

to provide a comprehensive and reliable set of statistics, increase access to and understanding of how

statistics can be used effectively to support decision making. Cornell StatsRRTC works with key

organizations to determine their needs and helps them maximize the use of disability statistics in their

ongoing efforts to improve the lives of people with disabilities and their families. As members of the

Cornell StatsRRTC, the American Association of People with Disabilities, the Center for an Accessible Society, and InfoUse provide vital expertise and resources needed to reach the users of disability

data and statistics. The Cornell StatsRRTC includes researchers from Cornell University, Mathematica

Policy Research, the Urban Institute, and the Institute for Matching People and Technology, all of

which bring extensive expertise in working with and creating sources of disability data.
5-4 NIDRR Program Directory FY 2005 - Disability Demographics

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

Emergent Disability, Systems Change, and Employment of People with

Disabilities

University of Massachusetts

Institute for Community Inclusion

100 Morrissey Boulevard

Boston, MA 02115

susan.foley@umb.edu

http://www.communityinclusion.org

Principal Investigator: Susan Foley, PhD; Doris Hamner, PhD 617/287-4317 (Foley); 617/287-4364

(Hamner)

Public Contact: Susan Foley, PhD 617/287-4317; Fax: 617/287-4352

Project Number: H133A021503

Start Date: December 01, 2002

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $300,000; FY 03 $300,000; FY 04 $299,640; FY 05 $299,640

Abstract: This project examines state service systems to document the impact of federal policies and

practices on systems change and how such changes affect people with disabilities. Research activities

include: (1) analysis of national, state, and local data collection systems and actual employment outcomes for people with disabilities; (2) documentation of data sets being used by state agencies to

measure effectiveness and how these could be used to examine outcomes for people with disabilities;

and (3) examination of how people with disabilities fare within the existing system and challenges they

may face through direct consumer research. The goals of the project are: (1) to develop a clear description and presentation of how federal policies impact systems change efforts; (2) to identify how these

policies and practices affect the lives of people with disabilities; (3) to identify procedures for a more

integrated approach to gathering data that better explains the consumer outcomes of these services; and

(4) to document how people with disabilities progress within the service system.
NIDRR Program Directory FY 2005 - Disability Demographics 5-5

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

A Study of Developmental Disability Service Utilization and

Expenditures in California

University of California, San Francisco

Department of Social and Behavioral Sciences

3333 California Street, Suite 455

San Francisco, CA 94118-0612

Principal Investigator: Charlene Harrington, PhD, RN 415/476-4030

Project Number: H133G050358

Start Date: October 01, 2005

Length: 24 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 05 $83,482

Abstract: This project conducts a two-year secondary data analysis of over 200,000 individuals with

developmental disability (DD) living at home and in the community who are actively served by the

California regional center program. The study examines formal service utilization and expenditures for

individuals with DD services. The study focuses on issues of equity in access to long term care services including personal care services for individuals with DD. This analysis builds upon prior national

studies of personal assistance services (PAS) and studies of the predictors of long term care utilization

and expenditures. Researchers describe the number and types of individuals with DD living at home or

in the community in California in terms of their predisposing socio-demographic characteristics (e.g.

age, gender, race/ethnicity, language), enabling factors (e.g. living arrangement, income, Medicaid

eligibility, and location), and need factors (e.g. physical abilities, cognitive functioning, and other

conditions). The project examines the amount and type of services and the costs of services (including

residential care, group homes, day care, PAS and other services). Multivariate analyses are used to test

hypotheses that factors other than needs are major predictors of service use and costs of formal services

for individuals with DD.
5-6 NIDRR Program Directory FY 2005 - Disability Demographics

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Colorado

National Study Of Disability Finance

University of Colorado Health Sciences Center

4001 Discovery Drive, Suite 210

Boulder, CO 80303

braddock@cu.edu

Principal Investigator: David L. Braddock, PhD

Public Contact: 303/492-0639

Project Number: H133G030149

Start Date: December 01, 2003

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: The project is a unique and comprehensive longitudinal study of the financial and programmatic structure of public spending for disability in each state of the US and at the national level. The

study develops and maintains a state-by-state and national database on public spending for mental,

physical, and sensory disability during 1997-2004, and investigates the determinants of that spending.

The project includes a wide-ranging dissemination and technical assistance program on innovative

financing of disability programs in the US, based on the results of this research. The project also

includes a consortium of dissemination and technical assistance partnerships with five national organizations: the National Conference of State Legislatures, the 100-agency-member Washington DC-based

Consortium for Citizens with Disabilities, the National Council on Independent Living, the National

Alliance for the Mentally Ill, and the grassroots ADAPT organization (Americans Disabled for Attendant Programs Today).
NIDRR Program Directory FY 2005 - Disability Demographics 5-7

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Differences in Mental Health Service Satisfaction Among Clients

Interviewed by Consumer and Non-Consumer Researchers Using

Computer-Assisted Personal Interview (CAPI) Technology

University of Illinois at Chicago

RRTC on Psychiatric Disability

104 South Michigan Avenue, Suite 900

Chicago, IL 60603

pickett@psych.uic.edu

http://www.psych.uic.edu/mhsrp/capi.htm

Principal Investigator: Susan Pickett-Schenk, PhD

Public Contact: 312/422-8180, ext. 17; Fax: 312/422-0740

Project Number: H133G020027

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05 $0 (No-cost extension

through 02/28/2006)

Abstract: To better understand mental health consumers’ evaluations of the services they receive, this

study compares differences in service satisfaction ratings made by clients interviewed by researchers

who are and are not mental health consumers. In a randomized design, 400 clients complete satisfaction surveys administered by mental health consumer researchers and 400 clients complete satisfaction

surveys administered by non-consumer researchers. Computer-assisted personal interview (CAPI)

technology is used to administer the satisfaction surveys. Study results provide important information

on clients’ satisfaction with community mental health programs, the effect of researchers’ consumer

status on program satisfaction ratings, and the use of CAPI technology in mental health program

evaluation.
5-8 NIDRR Program Directory FY 2005 - Disability Demographics

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Rehabilitation Readiness Tool for Latinos with Psychiatric Disabilities

Boston University

Latino Initiatives at the Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215

mertoro@bu.edu

http://www.bu.edu/cpr

Principal Investigator: Maria Restrepo-Toro, MS; Marianne Farkas, ScD

Public Contact: Maria Restrepo-Toro, MS 617/353-3549; Fax: 617/353-7700

Project Number: H133G020181

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $149,776; FY 03 $149,897; FY 04 $149,944; FY 05 $0 (No cost extension

through 5/31/2006)

Abstract: This project develops a Rehabilitation Readiness Tool for Latino Consumers with Serious

Psychiatric Disabilities. Based on information gathered about the experience of Latino consumers with

psychiatric disabilities. This tool can be used by professionals and /or the person’s family or natural

support system to assess and develop the individual’s readiness for rehabilitation in an effective and

culturally appropriate way. To implement the project the Center for Psychiatric Rehabilitation at

Boston University is collaborating with Maria Sardinas Center (MSC) and South Bay Guidance

Center (SBGC), both programs of Community Research Foundation in San Diego, CA, and Center

House, Inc., and Casa Primavera, both programs of Bay Cove Human Services in Boston, MA. The

present proposal addresses several barriers related to Latino service underutilization, including a lack of

understanding of how to begin services in a way that matches the Latino clients’ needs (i.e., readiness

to engage) and the absence of accompanying readiness educational materials in Spanish. The tool

generated by this project allows rehabilitation professionals, family members, and /or other natural

supports to help Latinos engage more successfully in the rehabilitation process. This innovation helps

to provide a bridge between existing rehabilitation services and the potential Latino consumer.
NIDRR Program Directory FY 2005 - Disability Demographics 5-9

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Using the U.S. Equal Employment Opportunity Commission (EEOC)

Employment Discrimination Charge Data System for Research and

Dissemination Purposes

Cornell University

Employment and Disability Institute

School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853

smb23@cornell.edu

Principal Investigator: Susanne Bruyère, PhD

Public Contact: 607/255-9536 (V); 607/255-2891 (TTY); ; Fax: 607/255-2763

Project Number: H133G040265

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: Using data from the Equal Employment Opportunity Commission (EEOC) Charge Data

System (CDS), this project analyzes trends in employment discrimination charges related to the ADA

and other laws. The CDS collects data on employment discrimination charges covered under Title I of

the ADA, as well as data on charges related to other laws. It contains information on (a) the demographic characteristics of charging parties, such as gender, racial and ethnic status, age, location, and

type of disability (e.g., back impairment, depression), (b) type of discriminatory behavior, such as

refusal to hire, failure to provide reasonable accommodation, unfair discharge, harassment, and (c)

charge outcomes, such as withdrawal with benefits, settlements, and other such outcomes. The project

uses these data to explore trends over time and across the states, and investigate whether these trends

are related to changes in the composition of the population with disabilities and changes in labor

market conditions. Using regression analysis, it explores the relationship of the ADA-related charge

rates to state-level economic conditions, government program participation by people with disabilities,

and other state-level characteristics. It also examines the changes in the composition of charges over

time with respect to the characteristics of charging party, the size and industry of the employer, the type

of alleged discriminatory treatment, and the EEOC ratings (A, B, C); it looks for the potential impact

of Supreme Court decisions within changes in these compositional changes. To achieve a better

understanding of patterns in ADA-related charges, researchers seek input from and work with the

EEOC and selected disability advocacy organizations, such as the law firm of Powers, Pyles, Sutter,

and Verville: the American Association of Persons with Disabilities: and representatives of the National Association of Protection and Advocacy Systems network.
5-10 NIDRR Program Directory FY 2005 - Disability Demographics

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

A Six-Year Longitudinal Study of Community Integration, Subjective

Well-Being, and Health After Spinal Cord Injury: Relationship with

Gender, Race/Ethnicity, and Environmental Factors

Medical University of South Carolina

College of Health Professions

77 President Street

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-0710

Project Number: H133G020218

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 02 $149,734; FY 03 $149,941; FY 04 $149,840; FY 05 $0 (No-cost extension

through 9/30/2006)

Abstract: This longitudinal study identifies changes in quality of life and health outcomes over a sixyear period as a function of gender, race/ethnicity, and environmental factors. Follow-up data are

collected from 466 participants from three collaborating sites that include the Shepherd Center, Rancho

Los Amigos National Rehabilitation Center, and Craig Hospital. The same core outcome measures that

were used during the preliminary data collection in 1997-98 are being re-administered by phone.

Measures include the Craig Handicap Assessment Reporting Technique, the Older Adult Health and

Mood Questionnaire, the Reciprocal Support Scale, the Behavioral Risk Factor Surveillance Survey

and the Life Situation Questionnaire. In addition, newly developed measures are being used to identify

the relationship between environmental factors and adverse outcomes. These measures include the

Craig Hospital Inventory of Environmental Factors; Acculturation, Integration, Marginalization, and

Segregation; and the assimilation factor of the Community Integration Measure. A 2x4x2 longitudinal

factorial design is being used to analyze the data. A mediational model is being used to identify the

extent to which differences in environmental factors explain any associations of gender and raceethnicity with participation, subjective well-being, health behaviors, and health outcomes.
Knowledge Translation, Utilization, and Technical Assistance

The knowledge translation (KT) process actively engages disability researchers,

researchers from other disciplines, service providers, policymakers, and persons with

disabilities and their families in the interchange, synthesis and application of

rehabilitation research knowledge. For NIDRR, the definition of KT refers to the

multidimensional, active process of ensuring that new knowledge gained through

the course of research ultimately improves the lives of people with disabilities, and

furthers their participation in society.

Contents

Disability and Rehabilitation Research Projects ........................................................... 1

Utilization Projects ...................................................................................................... 10

NIDRR Program Directory FY 2005 - Knowledge Translation 6-1

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Alabama

National Spinal Cord Injury Statistical Center

University of Alabama/Birmingham

SRC 515

1717 Sixth Avenue, South

Birmingham, AL 35249-7330

nscisc@uab.edu

http://www.spinalcord.uab.edu/show.asp?durki=24480

Principal Investigator: Yuying Chen, MD, PhD 205/934-3320

Public Contact: Vicki Farris 205/934-5049; Fax: 205/934-2709

Project Number: H133A011201

Start Date: July 01, 2001

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 01 $349,988; FY 02 $350,000; FY 03 $350,000; FY 04 $350,000; FY 05

$350,000

Abstract: The Statistical Center has the following objectives: (1) establish the appropriate IT system;

(2) train and provide technical assistance to the Model SCI centers; (3) communicate with NIDRR and

the centers to ensure quality of the items in the database; (4) demonstrate the capacity to conduct and

facilitate research from the database; (5) link to other related databases; (6) incorporate culturally

appropriate methods of data collection and dissemination, including culturally sensitive measurement

approaches; (7) demonstrate the capacity to provide technical assistance to the Model SCI centers and

other related projects regarding database development and maintenance.
6-2 NIDRR Program Directory FY 2005 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

National Resource Center for Parents with Disabilities

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

tlg@lookingglass.org

http://www.lookingglass.org

Principal Investigator: Paul Preston, PhD

Public Contact: 510/848-1112 (V); 800/644-2666 (V); 800/804-1616 (TTY); Fax: 510/848-4445

Project Number: H133A040001

Start Date: January 01, 2004

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 04 $500,000; FY 05 $500,000

Abstract: The National Resource Center for Parents with Disabilities focuses on the 10.9 percent of

U.S. families with children in which one or both parents have a disability—nearly 9 million parents.

The Center provides: (1) accessible and disability-appropriate information regarding parenting with a

disability to parents, potential parents, disability advocates, and legal, medical, and social service

providers; (2) training to parents with disabilities, potential parents, and service providers; (3) technical

assistance that increases informed practice and informed decisions; (4) program consultation that

increases local and regional services that are accessible and disability-appropriate. To accomplish these

goals, project researchers: (1) consolidate and disseminate information and resources, (2) synthesize

and disseminate materials from other agencies and organizations, (3) develop and disseminate new

materials tailored to address the specific needs of parenting with disabilities and service providers, (4)

expand the national availability of training and technical assistance to parents with disabilities and

service providers, and (5) develop curricula to train future service providers. Parenting areas designated

as highest priority are: custody, pregnancy and birthing, adoption, adaptive parenting equipment, and

general parenting information. The project is staffed by nationally recognized experts regarding parents

with disabilities, the majority of whom are parents with disabilities or family members of parents with

disabilities.
NIDRR Program Directory FY 2005 - Knowledge Translation 6-3

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

Innovative Knowledge Dissemination and Utilization for Disability and

Professional Organizations and Stakeholders

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

psyrehab@bu.edu

Principal Investigator: Marianne Farkas, ScD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133A050006

Start Date: October 01, 2005

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 05 $498,878

Abstract: This project is working collaboratively with the NIDRR, professional and consumer organizations, and stakeholders to develop, test, and apply a process of research standards development,

implementation, and related information dissemination strategies that allows end-users in the rehabilitation field to make informed choices based on the perceived utility of the research available, and in

doing so, promote utilization of rehabilitation research. The project uses well-developed standards to

determine which rehabilitation research results are of sufficient rigor to be worthy of dissemination.

Thus establishing an ongoing, scientific, easily accessible, central resource to help professionals utilize

what works in the disability field. The project has six specific goals: (1) Producing quality standards

for rating rehabilitation research rigor and meaning. A broad range of experts and various stakeholders

participate in consensus building regarding adapting existing standards for rating research rigor, and

create standards for meaning (perceived relevance). In this way, information disseminated will not only

be assessed as to its scientific rigor but also with respect to its relevance and applicability to various

end-users, thus promoting utilization of the research. (2) Project staff, along with NIDRR staff, professional and constituent organizations, and other KDU projects assist in developing standard topic

selection criteria and in selecting topical areas for information products. (3) Producing relevant information products describing the quality and implications of rehabilitation research studies based on the

developed standards. Constituent organizations participate in developing dissemination plans to translate research syntheses in the identified topical areas into information products relevant for appropriate

constituencies. (4) Creating and testing a prototype interactive website, The Right to Know Clearinghouse, to implement innovative dissemination strategies for key groups. (5) Evaluating the output,

perceived utility, and outcomes of the KDU project using the NIDRR logic model. Evaluated outcomes include an increase in awareness of research among constituency groups, an increase in understanding of research rigor and meaning among those groups, and an increase in the use of research

information by end-users. (6) Disseminating the project’s findings to stakeholders.
6-4 NIDRR Program Directory FY 2005 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

Web Accessibility Initiative, Phase II

Massachusetts Institute of Technology

W3C Web Accessibility Initiative

MIT/LCS Room NE43-355

200 Technology Square

Cambridge, MA 02139

jbrewer@w3.org

http://www.w3.org/WAI

Principal Investigator: Tim Berners-Lee 617/253-5702

Public Contact: Judy Brewer 617/258-9741

Project Number: H133A000500

Start Date: October 01, 2000

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 00 $499,999; FY 01 $499,998; FY 02 $500,000; FY 03 $499,999; FY 04

$500,000; FY 05 $0 (No-cost extension through 9/30/2006)

Abstract: The Web Accessibility Initiative (WAI) Phase II develops technical solutions and educational resources to increase accessibility of the Web for people with disabilities, and works with organizations around the world to promote awareness and implementation of Web accessibility solutions. For

millions of individuals with visual, hearing, physical, cognitive and neurological disabilities, accessibility of the Web means access to the information society: to educational opportunity, employment,

commerce, government services, and more. WAI Phase II activities include (1) ensuring accessibility

support in a broad range of Web technologies through ongoing review of all World Wide Web Consortium (W3C) specifications for new Web technologies, and through liaison with other organizations

developing Web technologies; (2) developing advanced guidelines and techniques for accessible Web

content, for browsers and media players, and for authoring tools, and providing in-house technical

assistance to software developers on implementation of accessibility guidelines in their products; (3)

developing expanded techniques and resources for more effective evaluation of Web site accessibility;

(4) developing a broad array of educational and outreach resources and activities promoting awareness

and implementation of Web accessibility, including online and hard-copy resources, introductory

materials for general audiences and technical materials for more advanced audiences, best-practice

training resources and events, reference lists of tools, policies, and events, and liaison to other standards organizations interested in Web accessibility; and (5) analysis of potential accessibility issues in

research and development related to advanced Web technologies.
NIDRR Program Directory FY 2005 - Knowledge Translation 6-5

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Jersey

Traumatic Brain Injury National Data Center

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

kwood@kmrrec.org

http://www.tbindc.org

Principal Investigator: Mitchell Rosenthal, PhD 973/243-6971

Public Contact: Kenneth Wood, PhD 973/243-6871; Fax: 973/243-6990

Project Number: H133A011403

Start Date: July 01, 2001

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 01 $348,187; FY 02 $348,133; FY 03 $348,064; FY 04 $348,075; FY 05

$348,088

Other Funding: FY 03 $10,000 (NIDRR Supplement)

Abstract: Goals of this TBI National Data Center include: (1) data collection improvements through

development of an interactive web-based syllabus for the use of Traumatic Brain Injury Model Systems (TBIMS) staff, researchers and others that improves the quality and cost-effectiveness of data

collection efforts; (2) a new web site featuring a searchable TBI Model Systems Research and Publication Registry; (3) enhanced statistical and technical consultation services to streamline the database,

employ innovative statistical techniques to compensate for incomplete or missing data, make comparisons with other datasets, improve measurement tools and prediction models, and enhance analysis of

longitudinal data; (4) improved data collection methods based on the “focus group” feedback received

from the data collectors at the other centers, which include awareness and incorporation of techniques

designed to improve cultural sensitivity of data collection instruments and data collection methodologies used in the model systems; (5) consumer dissemination of the latest TBIMS research results

through a partnership with the Brain Injury Association of America (BIAA); (6) continued leadership

in TBIMS dissemination activities through Facts and Figures, TBIMS and BIAA web sites, NCDDR

dissemination programs, journal publications, and TBIMS conferences; (7) continued development of

policies that allow for public access to data, while protecting the confidentiality of subjects in the

database and incorporating the perspectives of both NIDRR and the TBIMS researchers and data

management teams; (8) collaboration with the NIDRR SCI and Burn Data Centers to develop advanced methods of database function, data acquisition, data quality assurance, and general Data Center

operations; (9) exploring feasibility of new projects with Center for Disease Control and other programs whose database have similar TBI populations; and (10) conducting site visits to each TBIMS to

assure the highest levels of data quality and database integrity.
6-6 NIDRR Program Directory FY 2005 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Center for International Rehabilitation Research Information and

Exchange (CIRRIE-2)

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

515 Kimball Tower

Buffalo, NY 14214

ub-cirrie@buffalo.edu

http://cirrie.buffalo.edu

Principal Investigator: John Stone, PhD 716/829-3141, ext. 125

Public Contact: Marcia E. Daumen 716/829-3900, ext. 146; Fax:

Project Number: H133A050008

Start Date: November 01, 2005

Length: 60 months

NIDRR Officer: Eva M. Gavillan, EdD

NIDRR Funding: FY 05 $500,000

Abstract: The Center for International Research Information and Exchange (CIRRIE-2) offers a

comprehensive approach to address the needs of researchers, practitioners, and consumers for researchbased information from international sources. CIRRIE-2 objectives include: Expanding the existing

Database of International Rehabilitation Research; channeling specific information from the Database

to organizations and associations; developing an online multi-lingual international encyclopedia of

rehabilitation in English, Spanish, and French in collaboration with the Quebec Institute for Physical

Rehabilitation; sponsoring an international conference and workshops on the International Classification of Functioning Disability and Health (ICF); creating a Community of Practice on the ICF; and

cross mapping ICF terms to the thesaurus that is used to search both CIRRIE and REHABDATA

databases. Additionally, CIRRIE develops new pre-service initiatives in the area of cultural competence for disability service providers, including: Developing a textbook and two new monographs on

cultural competence for disability service providers; and conducting an international conference on

Providing Culturally Competent Disability Services in collaboration with Toronto-based Joint Centre

of Excellence on Research and Immigration and Settlement. CIRRIE-2 will support collaborative

activities between the U.S. and other countries by conducting four types of international exchange

programs: (1) short-term exchanges of individuals, (2) institutional linkage exchanges, (3) a program

for Minority Serving Institutions, and (4) a program for information gathering for dissemination to U.S.

audiences.
NIDRR Program Directory FY 2005 - Knowledge Translation 6-7

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

National Center for the Dissemination of Disability Research (NCDDR)

Southwest Educational Development Laboratory

211 East Seventh Street, Suite 400

Austin, TX 78701-3281

lharris@sedl.org

http://www.ncddr.org

Principal Investigator: John Westbrook, PhD

Public Contact: Lin Harris, Information Specialist 800/266-1832 (V/TTY); Fax: 512/476-2286

Project Number: H133A990008

Start Date: September 30, 1999

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 99 $750,000; FY 00 $750,000; FY 01 $750,000; FY 02 $750,000; FY 03

$750,000; FY 04 $750,000; FY 05 $0 (No-cost extension through 12/31/2005)

Abstract: The goal of the National Center for the Dissemination of Disability Research (NCDDR) is

to promote the utilization of research results developed through NIDRR grants/contracts. Major areas

of work of the NCDDR include: (1) Research designed to collect information that assists in identifying

the needs and most likely strategies that assist in matching dissemination practices with intended user

audiences. Activities include conducting annual surveys, focus groups, surveys, and annual reporting

of state-of-the-art information about NIDRR grantees’ dissemination successes. (2) Demonstration

conducted to determine the effectiveness of new strategies and approaches in achieving intended

dissemination and utilization outcomes. Activities include developing and using innovative web-based

mechanisms, increasing common portal access to substantive English and Spanish language resources

of grantees, and developing outreach strategies for under-represented audiences. (3) Dissemination and

Utilization implemented not to support the simple distribution of materials and other resources but

rather the use of research outcomes in meaningful ways by those that can most benefit from their use.

Activities include production of print and web-based informational products, networking of grantees to

maximize outreach impact, and developing networks with a variety of research stakeholder groups for

information and strategy exchanges. (4) Technical Assistance provided to NIDRR grantees to build

understanding, skills, and resources related to the dissemination and utilization of their disability

research outcomes. Activities include providing onsite and offsite assistance in planning effective

dissemination efforts, providing direct assistance to grantees with targeted dissemination efforts, and

assisting in designing evaluation strategies to measure dissemination and utilization outcomes.
6-8 NIDRR Program Directory FY 2005 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Research Utilization Support and Help (RUSH) Project

Southwest Educational Development Laboratory

211 East Seventh Street, Suite 448

Austin, TX 78701-3253

mlinder@sedl.org

http://www.researchutilization.org

Principal Investigator: John Westbrook, PhD

Public Contact: Mark Linder, Communications Assistant 800/761-7874 (V/TTY); Fax: 512/476-

2286

Project Number: H133A031402

Start Date: June 01, 2003

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 03 $350,000; FY 04 $350,000; FY 05 $350,000

Abstract: The RUSH project develops and tests models for increasing the effective use of NIDRR

research results. The RUSH Project intends to assess utilization successes in terms of benefits produced for intended user audiences including: people with disabilities and their families, disability

researchers, and disability service providers, among others. The goal is to expand awareness, strategies, and evaluation of knowledge utilization outcomes among NIDRR-supported researchers in order

to increase access and use of research results by those who can benefit the most from them. The

objectives for the RUSH Project are: (1) to assess the use of and obstacles to the dissemination/utilization of NIDRR-supported disability research by a wide range of potential target audiences; (2) to

develop a variety of strategies and approaches designed to accommodate differing topics of disability

research information and diverse target audiences; (3) to demonstrate a variety of new strategies and

approaches to improve/achieve utilization outcomes of disability research findings; (4) to disseminate

information about knowledge utilization models and their associated effectiveness by topic, target

audience, and level of knowledge transfer needed in order to increase the use of NIDRR grantees’

research outcomes; (5) to provide new and current NIDRR researchers with information they can use

to strengthen their dissemination and utilization approaches; and (6) to provide technical assistance to

NIDRR researchers to build understanding, skills, and resources in developing, implementing, and

evaluating knowledge utilization models within NIDRR project designs.
NIDRR Program Directory FY 2005 - Knowledge Translation 6-9

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Model Spinal Cord Injury Systems Dissemination Center

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Street

Houston, TX 77030-3405

khart@bcm.tmc.edu

http://www.mscisdisseminationcenter.org

Principal Investigator: Karen A. Hart, PhD

Public Contact: 713/797-5946; Fax: 713/797-5982

Project Number: H133A011501

Start Date: September 01, 2001

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05

$150,000

Abstract: The Model Spinal Cord Injury Systems (MSCIS) Dissemination Center is a collaborative

effort that includes the NIDRR-funded Model Spinal Cord Injury Centers and SCI collaborative

research projects. The Center provides information about MSCIS research and publications to inquirers

and model system staff members via the Internet, the telephone, and surface mail. Overall objectives of

the project are: (1) documenting the scientific productivity of the Model SCI Centers and Collaborative

Research Projects and providing a history of the Model Centers’ publications; (2) verifying that the

publications are peer-reviewed by downloading citations from Medline, Current Contents, Cumulative

Index to Nursing and Allied Health Literature (CINAHL), and Psychology Literature (PsychLit); (3)

ensuring the accuracy of the citations through verification by Center and author semi-annually; (4)

maintaining, on a semi-annual basis, the listing of web-accessible citations hosted on web site of the

Regional Spinal Cord Injury Center of the Delaware Valley at Thomas Jefferson University Hospital in

Philadelphia; (5) documenting and verifying the accuracy and currency of published book chapters and

textbooks; (6) storing information electronically in Reference Manager in a format that can be uploaded to Reference Web Poster on the Center’s web site; (7) gathering structured data from each of

the Model SCI Centers and Collaborative Research Projects that describes the educational products

produced and the presentations given; (8) classifying the educational products and presentations

produced by the Model SCI Centers and Collaborative Research Projects to provide a variety of

accurate retrieval options for interested constituents; (9) developing a data storage system that facilitates

uploads into the program’s web site in accessible format for interested constituents such as individuals

with SCI, organizations, NIDRR, NCDRR, NARIC, the Model SCI Centers, libraries, rehabilitation

facilities, professionals, and students; (10) disseminating efficiently and effectively to the greatest

number of constituents the publications, educational products, and presentations produced by the

Model SCI Centers and the Collaborative Research Projects as an aggregate representation of this

NIDRR program’s contribution to the field of SCI; (11) providing a mechanism for NCDRR and

NARIC to verify that they have complete and accurate information about all the Model SCI Centers

and their accomplishments so that NCDDR and NARIC can achieve their dissemination objectives;

and (12) reaching the greatest number of individuals possible with information and education about

SCI by efficient use of NIDRR-funded resources and personnel.
6-10 NIDRR Program Directory FY 2005 - Knowledge Translation

Utilization Projects Utilization Projects

Maryland

National Rehabilitation Information Center (NARIC)

HeiTech Services, Inc.

4200 Forbes Boulevard, Suite 202

Lanham, MD 20706

naricinfo@heitechservices.com

http://www.naric.com

Principal Investigator: Mark X. Odum

Public Contact: Information Specialists 800/346-2742 (V); 301/459-5984 (TTY); 301/459-5900 (V);

Fax: 301/459-4263

Project Number: ED-05-CO-0007

Start Date: March 01, 2005

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 04 $680,000; FY05 $792,000

Abstract: The National Rehabilitation Information Center (NARIC) maintains a research library of

more than 65,000 documents and responds to a wide range of information requests, providing facts

and referral, database searches, and document delivery. Through telephone information referral and the

Internet, NARIC disseminates information gathered from NIDRR-funded projects, other federal

programs, and from journals, periodicals, newsletters, films, and videotapes. NARIC maintains

REHABDATA, a bibliographic database on rehabilitation and disability issues, both in-house and on

the Internet. Users are served by telephone, mail, electronic communications, or in person. NARIC

also prepares and publishes the annual NIDRR Program Directory, available in database format from

NARIC’s web site.
NIDRR Program Directory FY 2005 - Knowledge Translation 6-11

Utilization Projects Utilization Projects

Maryland

ABLEDATA

ORC Macro

8630 Fenton Street, Suite 930

Silver Spring, MD 20910

abledata@orcmacro.com

http://www.abledata.com

Principal Investigator: Katherine Belknap 301/608-8998, ext. 105

Public Contact: Katherine Belknap 800/227-0216 (V); 301/608-8998 (V); 301/608-8912 (TTY);

Fax: 301/608-8958

Project Number: ED-02-CO-0038

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $516,829; FY 03 $589,408; FY 04 $635,313; FY 05 $635,313

Abstract: This project maintains and expands the ABLEDATA database, develops information and

referral services that are responsive to the special technology product needs of consumers and professionals, and provides the data to major dissemination points to ensure wide distribution and availability

of the information to all who need it. The ABLEDATA database contains information on more than

32,000 commercially produced and custom-made assistive devices. Requests for information are

answered via telephone, mail, electronic communications, or in person.

ADA Technical Assistance Programs

The Americans with Disabilities Act (ADA) opens more opportunities for persons

with disabilities. It also places certain responsibilities on employers, transit and

communication systems, state and local governments, and public accommodations.

To assist covered parties to understand and comply with the ADA, NIDRR has

funded a network of grantees to provide information, training, and technical

assistance to businesses and agencies with duties and responsibilities under the ADA.

Contents

ADA Technical Assistance Projects ...................................................................................................... 1

NIDRR Program Directory FY 2005 - ADA Technical Assistance Projects 7-1

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region I - CT, ME, MA, NH, RI, and VT

New England ADA Center and Universal Design in Educational IT

(Disability and Business Technical Assistance Center - Region I)

Adaptive Environments Center, Inc.

374 Congress Street, Suite 301

Boston, MA 02210-1807

oharrison@adaptiveenvironments.org; vfletcher@adaptiveenvironments.

http://www.adaptiveenvironments.org

Principal Investigator: Valerie Fletcher 617/695-1225, ext. 26

Public Contact: Oce Harrison, EdD, Project Director 800/949-4232 (V/TTY in CT, ME, MA, NH,

RI, and VT); 617/695-1225, ext. 27 (V/TTY); Fax: 617/482-8099

Project Number: H133D010211

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $850,000; FY 02 $850,000; FY 03 $850,000; FY 04 $850,000; FY 05

$850,000

Abstract: The New England DBTAC provides technical assistance, training, and information dissemination for Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. The new

grantee retains relationships with previously contracted state affiliates, the statewide coalitions, the

annual incentive grants, and the newsletter. Groups with rights or responsibilities under the ADA that

are targeted for expanded outreach include self-advocacy organizations and the ARC; libraries; human

resources trade groups; the hospitality industry, including visitor and convention bureaus; schools; and

health care professionals. Annual regional training initiatives include day-long workshops for state,

municipal, and county ADA coordinators; half-day trainings for centers for independent living; training

for architects on ADA updates; outreach and training in minority and immigrant communities both to

people with disabilities and business owners; and voter accessibility training. Implementation of the

education-based IT component of the project includes: (1) establishing regional linkages to educational

entities for cooperation/collaboration; (2) establishing the capacity in each state to coordinate and build

skill, using resources of state organizations and the state infrastructure to reach large audiences through

familiar, local methods; (3) training using a variety of distance learning techniques tailored to target

audiences; (4) convening a collaborative conference on universal design on the web with the Rhode

Island School of Design; (5) running a public awareness campaign that puts the issue of universal

design on the educational IT agenda; and (6) identifying best practices in the region to be written up as

case studies each year.
7-2 NIDRR Program Directory FY 2005 - ADA Technical Assistance Projects

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region II - NJ, NY, PR, and VI

Northeast Disability and Business Technical Assistance Center -

Region II

Cornell University

Employment and Disability Institute

School of Industrial and Labor Relations

107 ILR Extension Building

Ithaca, NY 14853-3901

northeastada@cornell.edu

http://www.northeastada.org

Principal Investigator: Susanne Bruyére, PhD 607/255-7727

Public Contact: Andrea Haenlin-Mott, Project Director 800/949-4232 (V/TTY, in NJ, NY, PR, and

VI); 607/255-8348 (V); 607/255-6686 (TTY); Fax: 607/255-2763

Project Number: H133D010205

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,100,000; FY 02 $1,100,000; FY 03 $1,100,000; FY 04 $1,100,000; FY

05 $1,100,000

Abstract: The Northeast ADA & Accessible Information Technology Center provides technical

assistance, training, and information dissemination for New Jersey, New York, Puerto Rico, and the

Virgin Islands on the ADA and accessible information technology. A new focus for the project is

information, training, and technical assistance to educational entities in Region II, on the procurement

and use of accessible information technology for students and employees with disabilities. Services are

comprehensive, involving effective use of existing networks and collaborations with regional partners

and organizations that currently deliver services to educational organizations, parent organizations,

disability advocacy organizations, employers, labor unions, and state and local government. The

Program on Employment and Disability at Cornell University’s School of Industrial and Labor Relations takes the lead in a regional collaborative effort that includes the following partners: Office of the

Advocate for Persons with Disabilities for New York state; AccessPoint Solutions in New Jersey; the

Department of Architecture and Center for Assistive Technology at the State University of New York

(SUNY) at Buffalo; the Assistive Technology Project at the University of Puerto Rico; the University

Affiliated Program at the University of the Virgin Islands; and various local agencies and organizations.
NIDRR Program Directory FY 2005 - ADA Technical Assistance Projects 7-3

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region III - DC, DE, MD, PA, VA, and WV

Mid-Atlantic Disability Business Technical Assistance Center -

Region III

TransCen, Inc.

451 Hungerford Drive, Suite 607

Rockville, MD 20850-4151

adainfo@transcen.org

http://www.adainfo.org

Principal Investigator: Marian S. Vessels, Project Director

Public Contact: 800/949-4232 (V/TTY, in DC, DE, MD, PA, VA, and WV); 301/217-0124 (V/

TTY); Fax: 301/217-0754

Project Number: H133D010212

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,099,998; FY 02 $1,099,998; FY 03 $1,099,998; FY 04 $1,099,998; FY

05 $1,099,998

Abstract: The Mid-Atlantic DBTAC provides technical assistance, training, and information dissemination for Delaware, the District of Columbia, Maryland, Pennsylvania, Virginia, and West Virginia.

Activities are organized under two major goals: (1) provide technical assistance, training, and information dissemination about the ADA; and (2) provide technical assistance, training, and information

dissemination about accessible education-based IT. Individual activities to meet these goals and project

objectives are designed to build capacity among State and local agencies, including centers for independent living, so that the Center’s impact and effectiveness is maximized. Approximately 20,000

individuals and organizations are directly impacted through project activities each year.
7-4 NIDRR Program Directory FY 2005 - ADA Technical Assistance Projects

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region IV - AL, FL, GA, KY, MS, NC, SC, and TN

Southeast Disability Business Technical Assistance Center - Region IV

Georgia Tech Research Corporation

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street

Atlanta, GA 30318

sedbtacproject@coa.gatech.edu

http://www.sedbtac.org

Principal Investigator: Shelley Kaplan, Project Director 404/385-0636

Public Contact: 800/949-4232 (V/TTY, in AL, FL, GA, KY, MS, NC, SC, and TN); 404/385-0636

(V/TTY); Fax: 404/385-0641

Project Number: H133D010207

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,450,000; FY 02 $1,450,000; FY 03 $1,450,000; FY 04 $1,450,000; FY

05 $1,450,000

Abstract: The Southeast DBTAC provides technical assistance, training, and information dissemination for Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, and

Tennessee. The project: (1) provides expert technical assistance to promote voluntary and effective

implementation of the ADA among entities with rights and responsibilities; (2) facilitates widespread

use, particularly in educational entities, of accessible and usable electronic and IT; (3) fosters and

facilitates regional capacity-building by cultivating collaborations between the regional Educational

Leadership Team and the existing ADA Leadership Network; (4) expands training programs by

incorporating enhanced distance learning methods, including teleconferences, web-based training, and

electronic discussions, that are designed in a fully accessible and useful manner; and (5) identifies and

disseminates “Best Practices” in employment and IT in order to encourage and support replication. To

build on its ten-year history of regional capacity building, the DBTAC: (1) strengthens its ADA

Leadership Network of eight state and 80 local affiliates; (2) shares expertise about IT through the

Georgia Tech Center for Assistive Technology and Environmental Access (CATEA)’s Information

Technology Technical Assistance and Training Center (ITTATC) project; and (3) facilitates accessible

education-based IT across the educational spectrum via the newly-established Educational Leadership

Team.
NIDRR Program Directory FY 2005 - ADA Technical Assistance Projects 7-5

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region V - IL, IN, MI, MN, OH, and WI

Great Lakes Disability Business Technical Assistance Center - Region V

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Room 405

Chicago, IL 60608-6904

gldbtac@uic.edu

http://www.adagreatlakes.org

Principal Investigator: Robin A. Jones, Project Director 312/996-1059

Public Contact: 800/949-4232 (V/TTY, in IL, IN, MI, MN, OH, and WI); 312/413-1407 (V/TTY);

Fax: 312/413-1856

Project Number: H133D010203

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,450,000; FY 02 $1,478,750; FY 03 $1,450,000; FY 04 $1,450,000; FY

05 $1,450,000

Abstract: The Great Lakes DBTAC provides technical assistance, training, and information dissemination for Illinois, Indiana, Michigan, Minnesota, Ohio, and Wisconsin. The project’s audiences

include business, government, and education organizations and individuals with disabilities and their

families. The Center assists these audiences in understanding their rights and responsibilities under the

ADA. For example, technical assistance and training are provided to educational entities regarding

their responsibility to ensure that the IT they purchase and use is accessible to and usable by individuals with disabilities. The aim is that within the education system administrators, educators, staff, students, and parents have full and equal access to programs, services, and information used or disseminated through a variety of information technologies. The Center programs and services are coordinated

through a network of collaborators at the local, state, and regional level representing business, government, education entities and people with disabilities. Services and programs include direct technical

assistance, training, and materials dissemination utilizing a variety of methods and strategies.
7-6 NIDRR Program Directory FY 2005 - ADA Technical Assistance Projects

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VI - AR, LA, NM, OK, and TX

Southwest Disability and Business Technical Assistance Center

(Southwest DBTAC-Region VI)

The Institute for Rehabilitation and Research (TIRR)

Independent Living Research Utilization (ILRU)

2323 South Shepherd Boulevard, Suite 1000

Houston, TX 77019-7024

dlrp@ilru.org

http://www.dlrp.org

Principal Investigator: Lex Frieden 713/502-0232

Public Contact: Wendy Wilkinson, Project Director 800/949-4232 (V/TTY, in AR, LA, NM, OK,

and TX); 713/520-0232 (V); 713/520-5136 (TTY); Fax: 713/520-5785

Project Number: H133D010210

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,099,997; FY 02 $1,099,997; FY 03 $1,099,997; FY 04 $1,099,997; FY

05 $1,099,997

Abstract: The Southwest DBTAC provides a comprehensive array of training, technical assistance,

and dissemination services on the Americans with Disabilities Act, accessible information technology

(IT), and other disability-related laws in the five states of Federal Region VI. The Southwest DBTAC

uses a collaborative structure of partners in all states, which enhances its ability to offer all services on

a state and local basis. Key partners include the New Mexico Technology Assistance Project, the

Southwest Educational Development Laboratory and several centers for independent living (CILs).
NIDRR Program Directory FY 2005 - ADA Technical Assistance Projects 7-7

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VII - IA, KS, MO, and NE

Great Plains ADA and Information Technology Center - Region VII

University of Missouri/Columbia

100 Corporate Lake Drive

Columbia, MO 65203

ada@missouri.edu

http://www.adaproject.org

Principal Investigator: Jim de Jong, Project Director 573/882-3600 (V)

Public Contact: 800/949-4232 (V/TTY, in IA, KS, MO, and NE); 573/882-3600 (V/TTY); Fax: 573/

884-4925

Project Number: H133D010201

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $850,000; FY 02 $850,000; FY 03 $850,000; FY 04 $850,000; FY 05

$850,000

Abstract: The Great Plains DBTAC provides technical assistance, training, and information dissemination for Iowa, Kansas, Missouri, and Nebraska. In order to facilitate successful implementation of

the ADA and accessible education-based IT in Region VII, the project and its collaborating partners:

(1) provide training and technical assistance, and disseminate materials to individuals and entities with

responsibilities and rights under the ADA regarding the ADA’s requirements as well as developments

in case law, policy, and implementation; (2) increase the capacity of organizations at the state and local

level, including centers for independent living (CILs), to provide training on the ADA; (3) provide

training and technical assistance, and disseminate material on the legal obligations of educational

entities to provide accessible IT to students and employees; (4) provide information to CILs, parent

training information centers, and regional resource centers on accessible education-based IT; (5)

increase the capacity of organizations at the state and local level, including CILs, to provide technical

assistance; (6) provide technical assistance to educational entities to enable them to conduct selfevaluations on the accessibility of their IT; and (7) provide technical assistance, either directly or

through referral, regarding how to make existing IT accessible and ensure that new IT acquisitions are

accessible.
7-8 NIDRR Program Directory FY 2005 - ADA Technical Assistance Projects

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VIII - CO, MT, ND, SD, UT, and WY

Rocky Mountain Disability Business Technical Assistance Center -

Region VIII

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

rmdbtac@mtc-inc.com

http://www.adainformation.org

Principal Investigator: Robert H. Gattis, Jr., Project Director 719/444-0252

Public Contact: 800/949-4232 (V/TTY, in CO, MT, ND, SD, UT, and WY); 719/444-0268 (V/

TTY); Fax: 719/444-0269

Project Number: H133D010204

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $849,716; FY 02 $849,157; FY 03 $849,576; FY 04 $849,993; FY 05

$849,942

Abstract: The Rocky Mountain DBTAC provides technical assistance, training, and information

dissemination for Colorado, Montana, North Dakota, South Dakota, Utah, and Wyoming. The project

builds the capacity for reaching every individual, business, public entity, and educational institution

with training, materials dissemination, and technical assistance on the ADA and educational-based IT

accessibility. A comprehensive program expands a collaborative network consisting of key agencies

and organizations throughout the region. This project also operates and maintains the ADA Impact

Measurement System (AIMS), a web-based system that collects customer survey data. This system

allows the ten regional DBTACs to evaluate the outcomes of the DBTAC
NIDRR Program Directory FY 2005 - ADA Technical Assistance Projects 7-9

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region IX - AZ, CA, HI, NV, and the Pacific Basin

Pacific ADA & IT Center (Pacific DBTAC)-Region IX

Public Health Institute

555 12th Street

Suite 130

Oakland, CA 94607-4046

adatech@pdbtac.com

http://www.pacdbtac.org

Principal Investigator: Erica C. Jones, Project Director 510/285-5600 (V/TTY)

Public Contact: 800/949-4232 (V/TTY, in AZ, CA, HI, NV, and the Pacific Basin); 510/285-5600

(V/TTY); Fax: 510/285-5614

Project Number: H133D010209

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,450,000; FY 02 $1,450,000; FY 03 $1,450,000; FY 04 $1,450,000; FY

05 $1,450,000

Abstract: The Pacific DBTAC provides technical assistance, training, and information dissemination

for Arizona, California, Hawaii, Nevada, and the Pacific Basin. The latest funding cycle includes a

series of innovative initiatives and approaches to enhance compliance with ADA rules and regulations.

There is also an integrated action plan to enhance the availability of accessible IT equipment in Federal

Region IX, primarily through a focus on educational institutions as key sites for adopting the principles

of Section 508, and for ensuring full access to IT for young people with disabilities. The Pacific

DBTAC’s interdisciplinary, multilevel management strategy ensures that all project objectives are

tracked and attained and that Center services are fully integrated and delivered in an effective, costefficient, and accessible manner. The DBTAC provides quality training, federally approved materials,

and technical assistance services to requesters who seek support, advice, and information and it conducts proactive strategic outreach and education services that promote adherence to ADA regulations

and principles at all levels of society. Education-Based Information Technology, being a key focus,

uses best practices to promote utilization throughout school systems.a:
7-10 NIDRR Program Directory FY 2005 - ADA Technical Assistance Projects

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region X - AK, ID, OR, and WA

Northwest ADA/IT Center (Disability Business Technical Assistance

Center - Region X)

Oregon Health and Science University

Oregon Institute on Disability and Development

P.O. Box 574

Portland, OR 97207-0574

nwada@ohsu.edu

http://www.nwada.org

Principal Investigator: Charles Drum, JD, PhD 503/494-8047

Public Contact: 800/949-4232 (AK, ID, OR, and WA only); 503/494-6747; Fax: 503/494-6868

Project Number: H133D010002

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $850,000; FY 02 $850,000; FY 03 $850,000; FY 04 $850,000; FY 05

$850,000

Abstract: The Northwest DBTAC/Information Technology Center provides technical assistance,

training, and information dissemination for Alaska, Idaho, Oregon, and Washington. Audiences

include people with disabilities, state and local governments, and businesses in Region X. In addition

to the Americans with Disabilities Act (ADA) and other state and federal disability laws and regulations, the Center also provides technical assistance, training, and dissemination to educational entities

regarding “best practices” information on accessible IT. The sources of such information include the

new National Center on Accessible Education-Based Information Technology.
NIDRR Program Directory FY 2005 - ADA Technical Assistance Projects 7-11

ADA Technical Assistance Projects ADA Technical Assistance Projects

Virginia

National ADA Program Assistance Coordinator

CESSI

6858 Old Dominion Drive, Suite 250

McLean, VA 22101

adata@adata.org

http://www.adata.org

Principal Investigator: Shelia Newman

Public Contact: Jennifer Eckel, Project Director 703/448-6155 (V); 703/448-3079 (TTY); Fax: 703/

442-9015

Project Number: ED-02-CO-0008

Start Date: May 03, 2002

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $557,883; FY 03 $577,566; FY 04 $597,152; FY 05 $617,737

Abstract: The role of the ADA Program Assistance Coordinator (PAC) is to enhance the performance

of the organizations that are members of NIDRR’s nationwide ADA Technical Assistance grant

program. These include ten regional Disability and Business Technical Assistance Centers (DBTACs),

and the National Center for Accessible Information Technology at University of Washington

(AccessIT). The Program Assistance Coordinator conducts: (1) coordination services, (2) collaborative

assistance, (3) public relations, and (4) reporting activities. In addition, the PAC organizes and manages the semi-annual Project Directors’ meetings. It facilitates legal review of grantee generated materials and conducts periodic searches for legal proceedings on the ADA and disability related laws in

federal and circuit courts. The PAC identifies and distributes appropriate materials from federal agencies, related NIDRR research projects, and private and public sector organizations. As a gateway to the

national ADA technical assistance grant program, the PAC maintains a national Web site, develops and

disseminates promotional materials, and provides the DBTACs with daily news updates to assure they

have timely information on disabilty related legislation.

Capacity Building for Rehabilitation Research and Training

Capacity building is foundational for NIDRR's agenda. NIDRR capacity building

includes three major components: (1) Improving and building a larger and better

quality supply of individuals to conduct research, (2) building a research

infrastructure at institutions to carry out research and related activities, and (3)

increasing the ability of consumers to interpret and use research and to play an active

role in the research process.

Contents

Rehabilitation Research and Training Centers (RRTCs) ............................................. 1

Disability and Rehabilitation Research Projects ........................................................... 3

Fellowships (Distinguished) ......................................................................................... 8

Fellowships (Merit) ..................................................................................................... 12

Advanced Rehabilitation Research Training Projects ................................................ 20

NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-1

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

University of Illinois at Chicago National Research and Training

Center on Psychiatric Disability

University of Illinois at Chicago

Department of Psychiatry

104 South Michigan Avenue, Suite 900

Chicago, IL 60603-5902

http://www.psych.uic.edu/uicnrtc

Principal Investigator: Judith A. Cook, PhD 312/422-8180, ext. 19

Public Contact: Jessica A. Jonikas 312/422-8180, ext. 18 (V); 312/422-0706 (TTY); Fax: 312/422-

0740

Project Number: H133B050003

Start Date: October 01, 2005

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $500,000

Other Funding: FY 05 $800,000 Centers for Mental Health Services (CMHS)

Abstract: The University of Illinois at Chicago National Research and Training Center on Psychiatric

Disability (UIC-NRTC) promotes access to effective consumer-centered and community-based practices for adults with serious mental illness. The Center is conducting five rigorous research projects to

enhance the state of evidence-based practice (EBP) in this field: A randomized controlled trial (RCT)

study of Wellness Recovery Action Planning (WRAP) to gather evidence regarding its effectiveness;

an RCT to evaluate the effectiveness of BRIDGES, a 10-week peer-led education course designed to

provide mental health consumers with basic education about the etiology and treatment of mental

illness, self-help skills, and recovery principles; an RCT of peer support services delivered by

Georgia’s Certified Peer Specialists (CPS) at consumer-run Peer Support Centers in order to determine

the outcomes of service recipients; a self-directed care program in which adults with serious mental

illnesses are given control of financial resources to self-direct their own recovery; and a project using

data from 12 clinical trials studies of consumer-operated service programs to create a national data

repository to promote research and develop scholarship in this area. The Center also conducts state of

the art training, dissemination, and technical assistance projects designed to enhance the leadership

skills of people with psychiatric disabilities, and evaluates a self-advocacy skills training program

delivered to clients of a large psychosocial rehabilitation agency. Additional projects evaluate selfadvocacy skills training programs and implement training programs to prepare consumer leaders in the

State of California to take part in systems change in their local communities. UIC-NRTC is embarking

on an academic curriculum transformation project starting at UIC in the medical, social, and behavioral

sciences to incorporate principles of recovery and EBP for people with psychiatric disabilities. The
8-2 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

UIC-NRTC is designing and administering a no-cost online certification program, providing comprehensive introduction of knowledge required by peer providers. Additionally, the UIC-NRTC is providing training and developing projects and tools to assist individuals in recovery to gain the skills necessary for community integration through enhancing the research capacity of three federally-funded

consumer-run Technical Assistance Centers. Finally, the UIC-NRTC is offering an annual series of

online workshops; web-based continuing education courses; and a state of science national conference

(2008) focusing on EBP, research implementation, consumer-centered systems, workforce development, and other emerging trends.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-3

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Connecticut

Building Research Capacity through Collaboration among American

Indian Tribes in Connecticut and Rhode Island

Mashantucket Pequot Tribal Nation

1 Matt’s Path

Mashantucket, CT 06339

vellien@mptn-nsn.gov; fwilkins-turner@mptn-nsn.gov

Principal Investigator: Valerie Ellien, PhD CRC

Public Contact: 860/396-2105; Fax: 860/396-2282

Project Number: H133A031706

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $294,057; FY 04 $336,824; FY 05 $349,984

Abstract: This project builds capacity among four American Indian Tribes to improve the quality of

health and disability service information available for Tribes in Connecticut and Rhode Island. Four

objectives achieves this goal: (1) to investigate access to, and acceptance rates for VR services, types

of services provided, and VR costs for American Indians with disabilities; (2) to ensure the optimal

collaboration of Connecticut and Rhode Island Indian Tribes and others in disability and rehabilitation

research, (3) to maximize potential for recruitment of American Indian researchers; and (4) to investigate and evaluate the participation of American Indians in disability and rehabilitation research activities and direct service delivery, and determine to what extent participation leads to improved VR

outcomes. All staff was trained in the Participatory Action Research Model, and Culturally Appropriate Research Methodology utilizing the expertise of the American Indian Rehabilitation Research and

Training Center at Northern Arizona University. An experienced senior rehabilitation researcher is

used as mentor to the Research Coordinator, through development of two surveys for data collection.

Two graduate students analyze the data and serve as mentors for the Research Technicians (Tribal

Members) who are hired to collect the data within their own communities. Data results are shared with

each of the four participating tribes (Mashantucket Pequot, Eastern Pequot, Schaghticoke, and

Narragansett) and with the Connecticut Bureau of Rehabilitation Services through the Advisory

Council of the Mashantucket Pequot Vocational Rehabilitation Program.
8-4 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Center for Strategic Capacity Building on Minorities with Disabilities

Research

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road

Chicago, IL 60608

http://www.uic.edu/orgs/empower

Principal Investigator: Fabricio E. Balcazar, PhD 312/413-1646

Public Contact: 312/413-1806 (V); 312/413-0453 (TTY); Fax: 312/413-2918

Project Number: H133A040007

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $600,000; FY 05 $600,000

Abstract: The Center for Capacity Building on Minorities with Disabilities Research (CBMDR)

increases the capacity of community-based organizations (CBOs like Centers for Independent Living

and other agencies) serving minorities with disabilities and State Vocational Rehabilitation Agencies

(VR) to involve consumers in identifying service needs and developing improvement strategies

through program evaluation research. The CBMDR utilizes participatory research methodologies to

promote organizational change and culturally appropriate services. The Center’s mission is to accomplish this by developing long-term relationships with CBOs and VR agencies, conducting participatory

research and demonstration projects, engaging in active dissemination efforts, and providing state-ofthe-art training and technical assistance to professionals and researchers in the field. The center primarily targets agencies serving African Americans, Latinos, and Native Americans with disabilities,

although participating organizations may serve additional minority groups.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-5

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Louisiana

Rehabilitation Research Institute for Underrepresented Populations

(RRIUP)

Southern University A&M College

Department of Rehabilitation and Disability Studies

229 Blanks Hall

Baton Rouge, LA 70813

kundusubr@aol.com

http://www.subr.edu/science/rehabcounsel/RRIUP/ResearchandTraining.htm

Principal Investigator: Alo Dutta, PhD

Public Contact: Madan Kundu, PhD 225/771-2819; Fax: 225/771-2293

Project Number: H133A031705

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $350,000; FY 04 $350,000; FY 05 $350,000

Abstract: The goal of this project is that of improving the quality and utility of research related to

individuals with disabilities from traditionally underserved racial/ethnic population to enhance knowledge and awareness of issues related to these populations, to help maximize the full inclusion and

integration of individuals with disabilities into society, and to improve the effectiveness of services

authorized under the Rehabilitation Act. The objectives of this project are: (1) to expand the existing

and proven work alliance of three minority and two non-minority entities, e.g., Southern University,

University of Hawaii at Manoa, Crownpoint Institute of Technology, University of Illinois at UrbanaChampaign, and Independent Living Research Utilization respectively, for strengthening the disabilityrelated multicultural research framework and improving long-term rehabilitation outcomes of culturally

diverse groups; (2) to investigate, evaluate, and modify five measures to assess the capacity and competence of the disability and vocational rehabilitation workforce to provide quality services to individuals with disabilities from traditionally underserved racial and ethnic populations; (3) to investigate and

develop culturally appropriate research capacity and infrastructure building techniques to ensure the

optimal participation of minority entities and Indian tribes in disability and rehabilitation research; and

(4) to develop and evaluate outreach, recruitment, training, reinforcement, retention, and dissemination

strategies to enhance participation of students and investigators from traditionally underserved populations as rehabilitation researchers, administrators, and educators.
8-6 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Toward Equity: Innovative, Collaborative Research on Interpreter

Training, DBT, and Psychological Testing

University of Rochester

Department of Psychiatry

Deaf Wellness Center

300 Crittenden Boulevard

Rochester, NY 14642

Robert_Pollard@urmc.rochester.edu

http://www.urmc.rochester.edu/dwc/scholarship/Equity.htm

Principal Investigator: Robert Pollard, PhD

Public Contact: 585/275-3544; Fax: 585/273-1117

Project Number: H133A031105

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $299,900; FY 04 $299,848; FY 05 $299,985

Abstract: The research activities of this project focus on three thematic categories: mental health

interpreting, dialectical behavior therapy, and psychological testing. The interpreter training project

builds upon the Deaf Wellness Center’s (DWC) prior innovations in interpreter training and applies

them to four geographically dispersed urban settings. A team of experts in the mental health interpreting field employs the DWC’s demand-control schema approach and implements a five-month program

of training and supervision with a local interpreter pool. Dialectical behavior therapy (DBT) is a highly

structured treatment approach focusing on emotional regulation and behavioral self-control. The threepart DBT project adapts DBT materials and methods to maximize treatment access and efficacy with

three deaf consumer populations: those with language skills, those with limited language, and those

with comorbid psychiatric and substance abuse problems. The Signed Paired Associates Test and the

ASL Stories Test are tests of verbal learning and memory for sign language users. The extensive data

that exists at the DWC regarding the tests’ psychometric properties and clinical utility implications are

analyzed. This research has implications for the assessment of dementias, developmental disabilities,

learning disabilities, etc. A second testing project is the development of a psychosis symptom rating

scale. The goal is to produce a tool that clinicians can employ to reliably and validly identify the nature

and severity of psychotic symptomatology in deaf individuals. Finally, the project includes a psychological testing casebook, written based on reviews of hundreds of DWC psychological testing case

files. Most of the studies are multi-site, collaborative ventures.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-7

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Minority Scholar/Champion Research Training Project

Texas Southern University

3100 Cleburne Avenue

Houston, TX 77004

http://www.tsu.edu/academics/continue/research/index.asp

Principal Investigator: Irvine E. Epps, EdD 713/313-7224

Public Contact: Darrell K. Simmons, Project Coordinator 713/313-7753; Fax: 713/313-7579

Project Number: H133A031704

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $350,000; FY 04 $349,655; FY 05 $349,889

Abstract: The Minority Scholars/Champions Research Training Project develops, implements, and

evaluates the effectiveness of a train-the-trainer “Scholar/Champion” model to facilitate increased and

improved vocational rehabilitation (VR)/disability research among the targeted Historically Black

Colleges and Universities (HBCUs). More specifically, the project develops an innovative research

infrastructure of institutional “cores” that partner an HBCU, Texas Southern University (TSU), with a

majority research institution, Baylor College of Medicine (BCM). Together, these partner institutions

create a collaborative research infrastructure that increases research capacity and helps build an institutional research infrastructure at five additional HBCUs in Texas. These “cores” are: (1) the Administrative, Planning, and Evaluation Core directs the Center, selects Center participants, and supervises

evaluation of all project activities, budgets, and reports; (2) the Training Core uses innovative methods

of onsite and off-site training to recruit, support, and mentor minority investigators in the areas of

research design, development, and implementation, including analysis of racial and cultural factors

related to VR/disability research; (3) the Community Collaboration and Dissemination Core partners

with communities and VR/disability agencies to engage individuals with disabilities in research and

training, using a model of participatory action-oriented research, and disseminates culturally-sensitive

information related to VR/disability research to community groups, agencies, and VR/disability researchers; and (4) the Research Core works with the HBCU Scholar/Champions to conduct innovative

and rigorous pilot research projects as well as write fully developed research proposals that address

racial disparities in VR/disability research.
8-8 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Fellowships (Distinguished) Fellowships (Distinguished)

Arkansas

Disability Activism in Post-Communist Europe: Implications for

American Disability NGOs

Daniel Holland, PhD, MPH

University of Arkansas, Little Rock; Department of Psychology

2801 South University Avenue

Little Rock, AR 72204-1099

dcholland@ualr.edu

Principal Investigator: Daniel Holland, PhD, MPH

Public Contact: 501/413-7838; Fax: 501/569-3047

Project Number: H133F050023

Start Date: January 01, 2006

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $55,000

Abstract: This fellowship is conducting research on the disability rights and independent living

movement in Central and Eastern Europe (CEE). The research focuses on the Visegrad Four: the

Czech Republic, Slovakia, Poland, and Hungary. Activities involve extensive policy research on

disability issues, civil society development, and health policy conducted at the University of Arkansas

at Little Rock. Qualitative field research involves phenomenological interviews with 20 disability

activists and leaders of nongovernmental organizations. The five primary goals are: (1) To better

understand disability activism in four post-communist countries that are undergoing internal transformation and rapid change in geopolitical relationships; (2) to write peer-review articles and edit a book

featuring contributions from disability activists in the Visegrad Four; (3) to write reports for international disability and human rights organizations; (4) to promote collaborative partnerships which result

in an international exchange of ideas and cooperative pursuit of resources; and (5) to use the fellowship

to encourage involvement in American and international disability organizations and forums.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-9

Fellowships (Distinguished) Fellowships (Distinguished)

Illinois

Improved Locomotion of Human SCI Through Sartorius Afferents

Ming Wu, PhD

Rehabilitation Institute of Chicago

345 East Superior Street, Room 1406

Chicago, IL 60611-4496

w-ming@northwestern.edu

Principal Investigator: Ming Wu, PhD

Public Contact: 312/238-0700; Fax: 312/238-2208

Project Number: H133F050031

Start Date: December 01, 2005

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $55,000

Abstract: People with incomplete spinal cord injury (SCI) typically experience problems walking,

particularly when trying to flex the leg, or swing it forward to take another step. These problems arise

from a combination of effects including paralysis of the involved muscles as well as uncontrolled reflex

activity in the legs, or spasms. The purpose of this study is to develop new techniques for assisting the

swing of the leg during gait using artificial stimulation of the natural hip position sensors. The primary

goal of this study is to improve the initiation of swing in people with SCI using artificial modulation of

sensory afferents from the sartorius muscle. The study uses combined hip and knee oscillation, intramuscular stimulation of the sartorius muscle, and combined sartorius stimulation and robot-assisted

walking to test the hypothesis that afferents from the sartorius muscle play a key role in producing

locomotor reflexes. The increased swing phase activity produced by reflex inputs from the sartorius is

useful for enhancing appropriate muscle activity during walking.
8-10 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Fellowships (Distinguished) Fellowships (Distinguished)

Michigan

Activities, Access, and Aging

Lois M. Verbrugge, PhD, MPH

2659 Heather Way

Ann Arbor, MI 48104

verbrugg@umich.edu

Principal Investigator: Lois M. Verbrugge, PhD, MPH

Public Contact: 734/936-2103; Fax: 734/936-2116

Project Number: H133F050022

Start Date: November 01, 2005

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $55,000

Abstract: This fellowship studies older persons’ difficulties in doing away-from-home activities due to

environmental barriers. Three fellowship projects include: (1) A manuscript on how to bring “personenvironment” thinking into large-scale survey research on disability; (2) a conference on environmental

barriers for older persons with disability; and (3) a survey analysis of older persons’ daily activities,

focusing on how disability affects the scope and types of activities. The conference focuses on Southeast Asia, those countries that are aging rapidly and are developing urban/rural spaces in ways that

impede access for aging persons and those with disabilities of all ages. Data analysis uses a recent

survey of older Malaysians. This survey serves as an example of how activities/time-use data for any

country and any age can be used to study disability.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-11

Fellowships (Distinguished) Fellowships (Distinguished)

Michigan

Adapting into late life with a Chronic Neuromuscular Disability

Sunny Roller

1113 Addington Lane

Ann Arbor, MI 48108

elsol@umich.edu

Principal Investigator: Sunny Roller

Public Contact: 734/971-1335

Project Number: H133F050039

Start Date: November 01, 2005

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $55,000

Abstract: The purpose of this study is to expand knowledge about the late life physical, social, and

environmental adaptation experience of polio survivors: older individuals who contracted poliomyelitis

between 1930 and 1955. To accomplish this purpose, the project identifies specific physical changes,

attitudes, coping techniques, and adaptive behaviors facilitating improved quality of life over the life

span and into late life. To identify these “survival tactics,” the investigation concentrates on the perceptions of a small and elite set of polio survivors—those who are designated the most highly regarded by

their peer group as senior role models and who are more than 50 years past disability onset. To achieve

the study objectives, the project employs qualitative social research methodology to describe the

sample and document perceptions. Using the Polio Trajectory model as a conceptual framework, the

project develops a Lessons-Learned Oriented Interview Instrument to elicit polio mentors’ life experience. The resulting interviews are analyzed using quantitative and qualitative methods. Rehabilitation

professionals will be able to use these findings to provide a variety of late life management recommendations to patients who are growing old with similar chronic disabling conditions.
8-12 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Fellowships (Merit) Fellowships (Merit)

Hawaii

Text-to-Speech Software as a Means to Improve the Unaided Reading

Comprehension and Overall Reading Skills of High School Students

Identified for Special Education or 504 Services

Kelly Drew Roberts, PhD

1776 University Avenue UA 4-6

Honolulu, HI 96822-2303

robertsk@hawaii.edu

Principal Investigator: Kelly Drew Roberts, PhD 808/255-2101

Public Contact: Kelly Drew Roberts, PhD 808/255-2101; Fax: 808/956-5713

Project Number: H133F050046

Start Date: October 01, 2005

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $45,000

Abstract: This fellowship seeks to determine if text-to-speech software is an effective tool for improving unaided reading comprehension, reading rate, and reading skills. Text-to-speech software provides

access to written material that is otherwise inaccessible to individuals with poor reading skills. While

text-to-speech software provides this access it is hypothesized that its use may also increase the unaided reading skills of “poor” readers. For this project, targeted research subjects are 11th grade students

(estimated age range from 16 to 19) who are identified for special education or 504 services (all disability categories) and reading between the 1.0 and 5.0 grade levels. Outcomes data is collected and

analyzed for each subject for the 1.5 years following the initial study. This data is used to determine if

the use of text-to-speech software leads to overall improved educational performance in secondary

school and improved transition to valued post-school outcomes such as access to postsecondary

education and employment.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-13

Fellowships (Merit) Fellowships (Merit)

Illinois

Evaluation of Barriers to Delivery of Rehabilitative Services to Infants

and Toddlers in the Custody of the Illinois Department of Children and

Family Services

Christina M. Bruhn, PhD

Children and Family Research Center

150 N. Wacker Drive, Suite 2120

Chicago, IL 60606

bruhn@uiuc.edu

Principal Investigator: Christina M. Bruhn, PhD

Public Contact: 312/641-2505, ext. 41

Project Number: H133F050018

Start Date: October 01, 2005

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $45,000

Abstract: This project evaluates systems for delivery of early intervention services to children aged 0

to 3 with developmental delays who are under the guardianship of the State of Illinois and living in

foster care due to having been adjudicated as abused or neglected; and provides vital information

concerning the efficacy of one programmatic approach. The project determines the percentage of these

children in Cook County, Illinois (Chicago) assessed for probable developmental delays by a specialized assessment unit mandated to serve this entire population, the percentage found to have likely

developmental delays, the percentage formally evaluated, the percentage found to have confirmed

developmental delays, the percentage receiving services identified in the Individualized Family Service

Plan, barriers associated with the assessment/referral delivery process, and characteristics associated

with cases of children most and least likely to receive services. Project results are provided to Department of Child and Family Services, and Department of Health in report form and disseminated through

journals, presentations and/or conferences. This information can be used both to guide policy and

practice revision as they apply to programs in Illinois and to guide program development in other states

and counties. Additionally, outcomes contribute to understanding of systematic approaches to improve

assessment, referral, and delivery of services to these children.
8-14 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Fellowships (Merit) Fellowships (Merit)

Kansas

The Effects of Diabetes on the Benefits of Exercise After Stroke

Patricia M. Kluding, PT, PhD

Physical Therapy and Rehabilitation Sciences

University of Kansas Medical Center

3901 Rainbow Boulevard; Mail Stop 2002

Kansas City, KS 66160

pkluding@kumc.edu

Principal Investigator: Patricia M. Kluding, PT, PhD

Public Contact: 913/588-6918; Fax: 913/588-4568

Project Number: H133F050006

Start Date: January 01, 2006

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $45,000

Abstract: The purpose of the project is to determine whether the presence of Type II diabetes mellitus

attenuates the benefits of aerobic and strengthening exercise for people with chronic stroke. The target

population is 30 adults, 15 with both stroke and diabetes and 15 gender- and age-matched subjects

with stroke alone. Project goals and objects include: (1) To determine whether people with stroke and

diabetes have decreased baseline measures of function, cardio-respiratory fitness, muscle strength, and

cognition compared to people with stroke alone; (2) to determine if people with stroke and diabetes

show less improvements after a 12-week aerobic and strengthening exercise program than those with

stroke alone in the areas of function, cardio-respiratory fitness, and lower extremity muscle strength;

and (3) to determine if either people with stroke alone or people with stroke and diabetes show improved cognition after a 12-week aerobic and strengthening exercise program. Analysis of variants is

used to examine the resulting differences in the dependent variables between subjects with stroke alone

and subjects with stroke and diabetes, at baseline and after 12 weeks of exercise. The results of this

study are analyzed to determine the feasibility of a large randomized clinical trial comparing the effects

of a specific exercise intervention in these two groups.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-15

Fellowships (Merit) Fellowships (Merit)

Massachusetts

Help-Seeking Pathways and Conceptions of Illness Among Chinese

Americans with Depressiond:

Yu-Mui Cecilia Wan, EdD

Boston University Center for Psychiatric Rehabilitation

20 Charlesgate West #508

Boston, MA 02215-2703

yumuiwan@bu.edu

Principal Investigator: Yu-Mui Cecilia Wan, EdD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133F050037

Start Date: December 01, 2005

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $45,000

Abstract: The utilization rate of mental health services in Asian Americans and Pacific Islanders (AA/

PIs) is the lowest across minority groups, making research on culturally competent interventions for

AA/PIs a priority. This study aims to expand the knowledge base of service utilization by examining

the help-seeking pathways and conceptions of mental illness among Asian Americans, as well as the

role their families play in the help-seeking process. The study focuses on Chinese Americans with

depression who do not utilize formal mental health services. The three research goals are: (1) To study

the explanatory models of mental illness of Chinese Americans with depression and their families, (2)

to describe the help-seeking pathways and their relationships to explanatory models of illness, and (3)

to study the role of traditional Chinese medicine in the conceptualization of mental illness and helpseeking behaviors. Findings of this study are reported in the form of individual family profiles, a

theoretical model explaining the relationship between explanatory models of depression and helpseeking, and a set of culturally appropriate suggestions to reach out to and educate Asian American

families who have members with depression.
8-16 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Fellowships (Merit) Fellowships (Merit)

New Jersey

Improving Self-Awareness and Functional Independence for Persons

with TBI: Investigation of the Efficacy of a New Therapeutic Technique

Yael Goverover, PhD

Kessler Medical Rehabilitation Research and Education Corporation

1199 Pleasant Valley Way

West Orange, NJ 07052-1424

ygoverover@kmrrec.org

Principal Investigator: Yael Goverover, PhD

Public Contact: 973/530-3654; Fax: 973/243-6984

Project Number: H133F040018

Start Date: October 01, 2004

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 04 $45,000; FY 05 $0 (No-cost extension through 9/30/2006)

Abstract: This project addresses problems of self-awareness and activity limitations among individuals

with traumatic brain injury (TBI). The main purpose of the project is to conduct an experimental

investigation on the effects of an awareness training technique, embedded within practice in instrumental activities of daily living (IADLs). The treatment to be tested is geared toward helping patients selfdiscover their own errors, to develop the ability to evaluate task difficulty in relationship to their own

strengths and weaknesses and desires, to plan ahead, and to choose appropriate strategies. Broader

effects on self-regulation and satisfaction with the therapy process are also examined.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-17

Fellowships (Merit) Fellowships (Merit)

New York

The Development and Psychometric Testing of the Dyspnea

Management Questionnaire (DMQ)

Anna Migliore, PhD

12 Walnut Street, Apartment 2

450 Clarkson Avenue, Box 81

Boston, MA 02108

amigliore@downstate.edu

Principal Investigator: Anna Migliore, PhD

Public Contact: 718/270-7732; Fax: 718/270-7464

Project Number: H133F040015

Start Date: August 01, 2004

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 04 $45,000; FY 05 $0 (No-cost extension through 12/31/2005)

Abstract: This study develops and evaluates a new rehabilitation outcome measure, the Dyspnea

Management Questionnaire (DMQ). This new self-administered clinical and research tool addresses

inadequacies in current assessments in measuring the psychosocial and behavioral functioning of adults

with chronic obstructive pulmonary disease (COPD). The ICF-2’s taxonomy and the Dyspnea Theoretical Model by Carrieri-Kohlman et al. are used to guide the instrument’s development. The DMQ

consists of three domains: symptoms, functional status, and consumer satisfaction. The ultimate aims of

developing the new outcome instrument are to better measure and understand clients’ experience of

dyspnea and dyspnea-related anxiety, promote rehabilitation goal setting, guide appropriate application

of dyspnea management strategies, and to better measure pulmonary rehabilitation outcomes. Dissemination focuses on promoting the use of this new assessment in future longitudinal rehabilitation outcome studies and different settings for both rehabilitation services and community support programs.
8-18 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Fellowships (Merit) Fellowships (Merit)

Oregon

Operation Determination: Using an Authentic Assessment Approach to

Determine Eligibility for IDEA Part C Early Intervention Services

Marisa Macy, PhD

University of Oregon

5253 University of Oregon

Eugene, OR 97403-5253

mmacy@uoregon.edu

Principal Investigator: Marisa Macy, PhD

Public Contact: 541/346-0809; Fax: 541/346-5639

Project Number: H133F050019

Start Date: October 01, 2005

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $45,000

Abstract: The purpose of Operation Determination is to investigate an authentic and linked assessment strategy that is effective in determining young children’s eligibility for Early Intervention IDEA

services. The traditional assessment process used to determine a child’s eligibility for Early Intervention services is problematic for at least three reasons: (1) traditional assessments do not produce information about a child that can be used beyond the eligibility determination phase of the assessment

process, (2) traditional assessments often do not provide functional information, and (3) traditional

assessments are usually not aligned with developmentally appropriate practice. This study examines

traditional and authentic eligibility assessment practices in an effort to discover an improved strategy

for determining a child eligible for services that will: link assessment information from the eligibility

phase to programmatic phases (i.e., instructional) of a service delivery system, include parent(s) in the

assessment process, align with developmentally appropriate practices, and provide functional information for effective service delivery. Research questions focus on understanding how well the authentic

eligibility assessment accurately classifies children for services, how the authentic eligibility assessment

compares to traditional eligibility assessments, and how reliable the authentic eligibility assessment is

when used by multiple examiners.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-19

Fellowships (Merit) Fellowships (Merit)

Oregon

Lost in Foster Care: What are the Experiences of Youth with

Disabilities in Foster Care

Jennifer M. Hogansen, PhD

Portland State University, Regional Research Institute

PSU/PRI; P.O. Box 751

Portland, OR 97207-0751

hogansen@pdx.edu

Principal Investigator: Jennifer M. Hogansen, PhD

Public Contact: 503/725-9603; Fax: 503/725-4180

Project Number: H133F050028

Start Date: October 01, 2005

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $45,000

Abstract: This project examines the incidence, characteristics, and experiences of youth with disabilities in foster care. The extant data from the State of Oregon’s Statewide Automated Child Welfare

Information System (SACWIS) is analyzed and used to obtain project objectives. There are five major

project objectives: (1) Systematically examining the characteristics of children and youth with disabilities in the foster care system; (2) examining the foster care experiences of adolescents with disabilities;

(3) identifying and evaluating any differences that exist for adolescents in foster care based on type of

disability; (4) comparing the experiences of adolescent youth with disabilities in foster care to peers in

foster care without disabilities; and (5) developing and disseminating products for researchers, service

providers, individuals with disabilities, and their families. Project outcomes include: Disability statistics

for foster care youth, results of comparative analyses between adolescent foster youth with disabilities

and those without, publications in peer- and non-peer review formats, meetings with state policy

makers, and presentations to national foster care organizations.
8-20 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Clinician Researchers and Engineers: Advanced Rehabilitation

Research Training

Marquette University

Orthopaedic and Rehabilitation Engineering Center

735 North 17th Street; PO Box 1811

Milwaukee, WI 53201

depps@mcw.edu

http://www.orec.org

Principal Investigator: Gerald F. Harris, PhD 414/288-0698

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133P040008

Start Date: September 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: This program provides advanced education and training in rehabilitation research to selected

engineers and clinician researchers. The overall goal is to develop expertise, enthusiasm, and productivity in rehabilitation research which results in an increase in the number of rehabilitation-trained

physicians and engineers. Fellows are trained to conduct independent transdisciplinary research on

problems related to disability and rehabilitation. The specific goal is produce productive career researchers. The program is specifically designed to give the postdoctoral trainees the skills needed to

become independent rehabilitation researchers. The postdoctoral trainees experience a program designed to provide each candidate with a unique set of capabilities to succeed as a rehabilitation researcher. The capstone experience for the postdoctoral trainees is the submission of an extramural

research proposal. Three research areas have been selected that provide opportunities to participate in

advanced-level research: motion analysis, spasticity, and accessible medical instrumentation. Four

clinical areas give participants clinical experiences to link to their research experiences: spasticity

management, pain management, spinal cord injury, and motion analysis. As part of the professional

development of the postdoctoral trainees and to increase the exposure to rehabilitation research, crossdisciplinary teaching is encouraged. At the completion of the program, all trainees have completed a

directed independent research project, written and submitted scientific manuscripts, prepared a complete extramural grant proposal, and gained experience in managing a functional research team.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-21

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

California

Advanced Rehabilitation Research Program: Ed Roberts Fellowship in

Disability Studies

University of California

IURD

104 Wheeler Hall MC 1870

Berkeley, CA 94720-1870

sschweik@uclink.berkeley.edu

http://www-iurd.ced.berkeley.edu/Press/2003-02-12disability-studies-fell owship.htm

Principal Investigator: Susan Schweik

Public Contact: 510/642-4874 (V); 510/549-1865; 510/913-5791; Fax: 510/643-9576

Project Number: H133P020009

Start Date: October 01, 2002

Length: 60 months3

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Other Funding: FY 04 $150,000

Abstract: This program trains scholars who have PhD, MD, or other advanced professional degrees,

conferred in the last five years, to be leaders in disability studies and rehabilitation research, teaching

and mentorship. Based at the University of California, Berkeley, a San Francisco Bay area-wide

consortium of universities, research institutes, and disability agencies recruits people who want to

broaden their theoretical outlook and their disability research methodological skills. In particular, the

project recruits scholars with significant disabilities from minority groups who have not had the opportunity for collaborative cross-disciplinary research study of disability that includes social science and

the humanities. The project supports three nine-month-long (September to May) Ed Robert

Postdoctoral Fellowships a year for each of the five program years. Fellows devote their full-time effort

to Fellowship activities on site. Funding includes a stipend and travel funds.
8-22 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Florida

Interdisciplinary Rehabilitation Research Post-Doctoral Program

University of Florida

Department of Occupational Therapy

P.O. Box 100164

Gainesville, FL 32610-0164

wmann@hp.ufl.edu

http://www.hp.ufl.edu/rehabsci/

Principal Investigator: William C. Mann, PhD

Public Contact: 352/392-2617; Fax: 352/846-1042

Project Number: H133P020005

Start Date: August 01, 2002

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: This project addresses the shortage of rehabilitation researchers through an interdisciplinary

postdoctoral training program in rehabilitation research. The focus is on recruiting and training

postdoctoral fellows with backgrounds in professions of high need, specifically rehabilitation engineering, physical therapy, and occupational therapy. There is also a strong focus on recruiting members of

groups that have been traditionally underrepresented in rehabilitation research positions. The participating faculty for this program have large funded programs of rehabilitation research and also have

considerable experience in serving as mentors for advanced research training. The program offers

postdoctoral fellowships from two to three years to qualified individuals interested in rehabilitation

research. Postdoctoral fellows focus in an area related to one of the levels of these models: neurological

rehabilitation, rehabilitation engineering, and rehabilitation outcomes research.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-23

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training

University of Illinois at Chicago

Department of Disability and Human Development

College of Health and Human Development Sciences

1640 West Roosevelt Road

Chicago, IL 60608-6904

theller@uic.edu

http://www.uic.edu/dhd

Principal Investigator: Tamar Heller, PhD

Public Contact: 312/413-1537; Fax: 312/996-6942

Project Number: H133P000005

Start Date: April 01, 2000

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $150,000; FY 01 $150,000; FY 02 $150,000; FY 03 $150,000; FY 04

$150,000; FY 05 $0 (No-cost extension through 3/31/2006)

Abstract: This project provides an intensive interdisciplinary postdoctoral training program for disability and rehabilitation research scholars. The program combines immediate immersion in an ongoing

research program with a focused didactic training experience, providing trainees with knowledge of

the critical values, current issues, and innovative approaches in contemporary disability research. The

training is offered through a cooperative effort of three units within the College of Health and Human

Development Sciences: the Department of Disability and Human Development, Department of Occupational Therapy, and the Department of Physical Therapy. These departments have an established

record of successful collaboration in advanced training, including creating the Interdisciplinary in

Disability Studies at UIC, a unique interdisciplinary doctoral program that addresses the multidimensional nature of disability. A central theme of this program is that the current fragmentation of knowledge regarding disability can be rectified only by preparing future scholars and researchers who have a

coherent, integrated, and in-depth knowledge of the multidimensional nature of disabilities. All three

academic units offering this advanced research training have senior faculty with established, ongoing

research programs capable of guiding postdoctoral training in three specialized content areas of disability research: disability measurement, disability experience, and disability service and policy.
8-24 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training Project in Rehabilitation

Services Research

Northwestern University

Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

http://www.ric.org/research/fellowships.php

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-2383

Project Number: H133P030002

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: This project develops a five-year fellowship program in rehabilitation-related health services

research at Northwestern University’s Institute for Health Services Research and Policy Studies and

the Department of Physical Medicine and Rehabilitation. It uses available expertise and collaborators

to train postdoctoral fellows in rehabilitation health services research. Over two years the program

includes course work, a practicum, original research, and grant writing. Fellows new to health services

research have six core courses, as well as the two additional courses for all fellows. The first year

concentrates on beginning Masters in Public Health (MPH) courses. The second year includes intermediate MPH course work plus electives. Each fellow is expected to develop an individual research

project by the end of the first training year, a publishable article by the end of the first year, and two

articles by the end of the second year, in addition to submitting at least one grant application related to

the research activity.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-25

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Rehabilitation Science for Basic Scientists & Engineers: An Advanced

Training Program

Northwestern University

Rehabilitation Institute of Chicago

345 East Superior, Room 1406

Chicago, IL 60611-4496

Principal Investigator: W. Zev Rymer, MD, PhD

Public Contact: 312/238-3919; Fax: 312/238-2208

Project Number: H133P040007

Start Date: May 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $149,625; FY 05 $149,922

Abstract: The goal of this program is to increase the number of PhD engineers and basic scientists

trained to perform research aimed at solving problems of people with disabilities. To meet this objective, the project trains postdoctoral scientists in three areas of special expertise: musculoskeletal biomechanics; neurorehabilitation; and prosthetics, orthotics, and biomaterials. Targeted technical training is

coordinated with intensive clinical instruction and experience. Postdoctoral trainees, including scientists and engineers from minority or disability groups, are recruited by regional and national advertising

and via the Internet. Many training faculty are based within the Rehabilitation Institute of Chicago,

providing access to active clinical rehabilitation programs, and interaction both with clinical faculty and

people with disabilities.
8-26 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Massachusetts

Advanced Research Training Program in Psychiatric Rehabilitation

Boston University

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue

Boston, MA 02215-1303

zlatka@bu.edu; ellison2@bu.edu

http://www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD; Marsha Ellison, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133P020011

Start Date: September 01, 2002

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 02 $149,984; FY 03 $149,991; FY 04 $149,996; FY 05 $149,988

Abstract: This project prepares a cadre of six advanced-level researchers in the area of psychiatric

rehabilitation. The recruitment efforts target consumers, with the expectation that one or more consumers will be selected for the training program. Six fellows are recruited over the course of the project.

The training program consists of two consecutive cycles of 2.25-year postdoctoral fellowships in

psychiatric rehabilitation research. In order to optimize the training experience, three fellows are in

residence during each cycle. While the fellowship is designed to provide broad-based intensive training

in psychiatric rehabilitation research, the six fellows develop a particular expertise in conducting

recovery-oriented research, given the current research profile of the Center for Psychiatric Rehabilitation at Boston University. Through a variety of training modalities fellows acquire competencies in the

following areas: psychiatric rehabilitation and recovery oriented systems, recovery framework and

consumer issues, research design/methodology, statistics, computer literacy, conduct of applied rehabilitation research, and grant and professional writing.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-27

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Massachusetts

Post-Doctoral Fellowship in Rehabilitation Outcomes and Effective

Research

Boston University

Health and Disability Research Institute

53 Bay State Road

Boston, MA 02215

mtripodi@bu.edu

http://www.bu.edu/cre/training

Principal Investigator: Alan M. Jette, PhD 617/358-3472

Public Contact: Maria Tripodi 617/353-4202; Fax: 617/353-1355

Project Number: H133P050001

Start Date: September 01, 2005

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 05 $150,000

Abstract: The BU Post-Doctoral Fellowship Program in Outcomes Research provides an interdisciplinary training and mentorship experience. The target group is doctorally-prepared rehabilitation professionals. The major function is to help post-doctoral fellows develop and refine the skills they will need

to conduct high quality, independent, funded research on the outcomes and effectiveness of rehabilitation care. Innovative strategies include: Obtaining advanced knowledge in the four content areas of

responsible conduct of research, advanced research design, advanced statistical methods, and contemporary measurement methodology; conceptualizing and assuming a major role in writing scientific

articles; obtaining experience in developing and presenting scientific presentations; assuming a major

role in writing research grant applications; and developing the ability to contribute in a meaningful and

constructive fashion in planning and implementing scientific abstracts, grant applications, and scientific

manuscripts as part of a research team. The main outcome of the program is to contribute to the creation of a cadre of highly skilled researchers equipped to conduct research to improve rehabilitation

outcomes and evaluate existing and new rehabilitation interventions.
8-28 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Michigan

The UMHS/MSU/AACIL Rehabilitation Research Training Program

University of Michigan

Department of Physical Medicine and Rehabilitation

Rehabilitation Psychology

325 East Eisenhower, Suite 100

Ann Arbor, MI 48108

dgtate@umich.edu

http://www.med.umich.edu/pmr/arrtp/

Principal Investigator: Denise G. Tate, PhD, ABPP

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133P030004

Start Date: September 01, 2003

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: The University of Michigan Health System (UMHS), Department of Physical Medicine and

Rehabilitation, and the Ann Arbor Center for Independent Living (AACIL) with consulting faculty

from Michigan State University (MSU) and Wayne State University (WSU) have developed a training

program to train six PhD and ten MD fellows. Training opportunities include the existing research

programs funded at UMHS, the academic doctoral level rehabilitation counseling program at MSU, the

multidisciplinary rehabilitation program at WSU, and opportunities for research training at a community-based agency, the AACIL. Emphasizing the consumer-scientist-practitioner model, this

multidisciplinary research training program utilizes faculty and resources from 3 universities and from

the AACIL to train 16 new fellows. Fellows and resident trainees may select from a curriculum that

focuses on three content areas: (1) health rehabilitation outcomes; (2) independent living and community re-integration; and (3) social/environmental aspects of rehabilitation, including assistive technology.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-29

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New Jersey

Advanced Rehabilitation Research Training Center on Outcomes and

Intervention Effectiveness

University of Medicine & Dentistry of New Jersey

Department of Physical Medicine and Rehabilitation, B261

150 Bergen Street

West Orange, NJ 07103

mjohnston@kmrrec.org

http://www.kmrrec.org/KM/careers/outcomes_fellows.php3

Principal Investigator: Mark V. Johnston, PhD 973/243-6810

Public Contact: Mark V. Johnston, PhD 973/243-6810; Fax: 973/243-6963

Project Number: H133P020012

Start Date: March 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $149,847; FY 03 $149,500; FY 04 $149,500; FY 05 $149,500

Abstract: This postdoctoral research training program develops researchers who advance knowledge

of the impact of interventions—medical, activity-based, social-psychological, and environmental—on

outcomes for persons with physical and neurological disabilities. The program emphasizes the actual

conduct of research, leading to publication. Outcomes-related study topics include research on prognosis and severity adjustment, treatment guidelines, quality improvement strategies, cost-effectiveness,

and issues of health policy. Fellows typically begin by participating in one or more research projects

suggested by their mentor and studying to improve their knowledge and skills. Fellows also develop

their own research grant proposals. The program is supported by the University of Medicine and

Dentistry of New Jersey/New Jersey Medical School and the Kessler Medical Rehabilitation Research

and Education Corporation.
8-30 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New York

Advanced Rehabilitation Research Training Program

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

One Gustave L. Levy Place; Box 1240

New York, NY 10029

mary.hibbard@mssm.edu

http://www.mssm.edu/tbinet

Principal Investigator: Mary R. Hibbard, PhD 212/659-9374

Public Contact: 212/659-9374; Fax: 212/348-5901

Project Number: H133P050004

Start Date: September 01, 2005

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 05 $149,999

Abstract: This Advanced Rehabilitation Research Training Program increases research capacity by

training ten doctoral level professionals interested in pursuing research careers in rehabilitation of

individuals with traumatic brain injury (TBI) and spinal cord injury (SCI). In addition to expanding

their research expertise, fellows will increase their knowledge of participatory action research, quantitative and qualitative research methods, and actively participate with an interdisciplinary team of rehabilitation researchers. Fellows are taught approaches to performance management and methods of evidenced-based practice review. Research capacity building of the fellows is facilitated via mentoring on

independent research projects and clinical supervision in interdisciplinary research experiences. To

ensure sensitivity to issues germane to individuals with TBI and SCI, fellows spend a portion of their

time providing clinical interventions or participating in structured community experiences. Performance

measures are utilized to monitor progress of the program and its fellows, with oversight provided by an

executive committee and an advisory board. By completion of training, fellows are expected to have

completed a minimum of one independent research project, presented the results of their research to

professional and consumer groups, submitted their findings for publication in peer-reviewed journals,

and participated in writing extramural grant proposals.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-31

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Texas

Interdisciplinary Rehabilitation Research Training Program

University of Texas Medical Branch

301 University Boulevard

Galveston, TX 77555-1137

kottenba@utmb.edu

http://www.sahs.utmb.edu/rehab/

Principal Investigator: Kenneth J. Ottenbacher, PhD

Public Contact: Beth Cammarn 409/747-1637; Fax: 409/747-1638

Project Number: H133P040003

Start Date: July 01, 2004

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $145,686; FY 05 $145,686

Abstract: This ARRT program provides postdoctoral research opportunities to qualified individuals

interested in clinical and academic careers related to rehabilitation research. Three postdoctoral fellows

must plan, conduct, and disseminate research in one of the following areas: cognitive/neurological

rehabilitation, applied physiology/biomechanics of rehabilitation, or geriatric rehabilitation. Each

rehabilitation research fellow selects one of the three research areas and conducts clinical investigations

for up to three years. Outcomes include published research studies, presentations at national scientific

meetings, submission of grant proposals, completion of research related courses, training in techniques

of dissemination, and the development of interdisciplinary research networks. In addition to participating in clinical research activities, each fellow completes a series of core courses and directed study

related to interdisciplinary research and the ethics associated with scientific inquiry and the use of

human subjects in rehabilitation research. All fellows participate in a practicum experience involving

persons with disabilities and their families/caregivers organized through the Transitional Learning

Center. The activities of each postdoctoral fellow are directed and monitored by a fellowship supervisor with a demonstrated ability to implement, conduct, and disseminate the results of research investigations contributing to the advancement of rehabilitation science.
8-32 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Texas

Advanced Rehabilitation Research Training

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

One Baylor Plaza

Houston, TX 77030

drintala@bcm.tmc.edu

http://public.bcm.tmc.edu/pm&r/education/Fellowships/RehabResearch. html

Principal Investigator: Diana H. Rintala, PhD 713/791-1414, ext. 5807

Public Contact: Jacquie Parish 713/797-5940; Fax: 713/797-5982

Project Number: H133P020003

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: This program trains postdoctoral fellows in the skills necessary to become independent

investigators in rehabilitation. Research training in the Department of Physical Medicine and Rehabilitation is multidisciplinary in nature, and encompasses the spectrum from basic mechanism to societal

integration. Through this program, fellows develop research expertise in spinal cord injury, stroke,

Parkinson’s disease, amputee rehabilitation, neuropsychological rehabilitation/cognitive neuropsychology, rehabilitation outcomes, and social policy. The coursework includes topics such as research

methodology, statistical methods, ethical issues, special populations, and scientific writing. The Applied Rehabilitation Research Course complements the Clinical Scientist Training Program by emphasizing the unique characteristics of research in rehabilitation. Fellows also participate in other education

activities such as the department’s Research, Education, and Development Seminar and are expected

to present and produce documentation for publication on their independent research and prepare

applications for federal funding building on their project for career development. They also attend, and

submit abstracts for presentation at, national professional meetings to begin to integrate into the greater

rehabilitation research community.
NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research 8-33

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Virginia

Advanced Research Training Program

Virginia Commonwealth University

Department of Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0542

lalivingston@vcu.edu

http://advanced.rehabilitationresearch.com

Principal Investigator: Jeffrey Kreutzer, PhD 804/828-9055

Public Contact: Lee Livingston 804/828-3706; Fax: 804/828-2378

Project Number: H133P040006

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: This project is an advanced rehabilitation research training (ARRT) program for individuals

with advanced degrees who are committed to a career in rehabilitation research with a focus on

neurobehavioral recovery and intervention. Training and research activities address brain injury,

aneurysms, brain tumors, and other neurological disorders. Individualized research training plans

emphasizing scientific rigor guide fellows’ choices of training activities. Outstanding mentors, didactic

experiences, and collaborative and independent research activities provide the foundation for the VCU

ARRT program. Mentors include internationally and nationally renowned, distinguished scientists

from the fields of rehabilitation medicine, neuropsychology, psychiatry, neurosurgery, and vocational

rehabilitation. Core courses on ethics, conduct in scientific research, and grant writing are complemented by grand rounds and graduate courses. All fellows must complete and submit a grant application during the second year of their fellowship.
8-34 NIDRR Program Directory FY 2005 - Capacity Building for Rehabilitation Research

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Wisconsin

Advanced Rehabilitation Research Training for Physicians and

Biomedical Engineers

Marquette University

Orthopaedic and Rehabilitation Engineering Center

735 North 17th Street; P.O. Box 1881

Milwaukee, WI 53201

depps@mcw.edu

http://www.orec.org

Principal Investigator: Gerald F. Harris, PhD 414/288-0698

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133P020004

Start Date: July 01, 2002

Length: 60 months

NIDRR Officer: William V. Schutz, PhD, MSW, MPH

NIDRR Funding: FY 02 $84,566; FY 03 $144,506; FY 04 $148,634; FY 05 $149,186

Abstract: This project develops expertise, enthusiasm, and productivity in rehabilitation research that

results in an increase in the number of rehabilitation-trained physicians and biomedical engineers able

to conduct independent transdisciplinary research on problems related to disability and rehabilitation.

The program is specifically designed to give the postdoctoral trainees the skills needed to become

productive career researchers. The training program utilizes a rehabilitation research team consisting of

a focused cadre of mentors and two postdoctoral fellows (one postdoctoral physician and one

postdoctoral biomedical engineer). The trainees are enrolled in the research training program for 18

months. A total of three physicians and three biomedical engineers participate in this training program

over the five-year period.