The NIDRR Program Directory

Fiscal Year 2002

Produced by The National Rehabilitation Information Center

A project funded by The National Institute on Disability and Rehabilitation Research, project number ED-02-CO-0002.
National Institute on Disability and Rehabilitation Research

Program Directory 2002

Produced by the

National Rehabilitation Information Center

Lanham, MD

Mark X. Odum

Director

Daniel L. Wendling

Media and Public Education Manager

Jessica H. Chaiken

Media Specialist
The full text of this public domain publication is available at the NARIC’s home page at http://

www.naric.com and in alternate formats upon request. For more information, please contact us at:

NARIC

4200 Forbes Boulevard, Suite 202

Lanham, MD 20706

800/346-2742 or 301/459-5900 (Voice)

or 301/459-4263 (TTY).
Contents

Introduction .....................................................................................................i

Research Priorities

Employment Outcomes .................................................................................1

Health and Function.......................................................................................2

Technology for Access and Function............................................................3

Independent Living and Community Integration.........................................4

Associated Disability Research Areas ............................................................5

Knowledge Dissemination and Utilization ...................................................6

ADA Technical Assistance Projects ...............................................................7

Capacity Building for Rehabilitation Research Training ..............................8

State Technology Assistance .........................................................................9

Appendices

Subject Index ................................................................................................A

Grantees ......................................................................................................... B

Projects by State ............................................................................................ C

Principal Investigators ...................................................................................D

Projects by Program Type ............................................................................ E
Introduction

The mission of the National Institute on Disability and Rehabilitation Research (NIDRR) is to generate, disseminate and promote knowledge that will improve the lives of persons with disabilities in their

communities. NIDRR conducts comprehensive and coordinated programs of research and related

activities to assist in the achievement of the full inclusion, social integration, employment, and independent living of people with disabilities. This edition of the NIDRR Program Directory lists all projects

funded by NIDRR during the 2002 fiscal year.

NIDRR’s Long-Range Plan, announced in the Federal Register, December 7, 1999 (http://

www.ed.gov/offices/OSERS/NIDRR/#LRP), provides background on NIDRR’s conceptual base. It

describes the “new paradigm of disability,” which posits that disability is an interaction between the

individual and the environment. NIDRR’s research focus includes such areas as: employment outcomes, health and function, technology for access and function, independent living and community

integration, associated disability research areas, knowledge dissemination and utilization, and capacity

building for rehabilitation and international activities. For detailed descriptions of these areas, consult

the Long-Range Plan.

NIDRR’s Research Program

NIDRR’s research is conducted via a network of individual research projects and centers of excellence

throughout the country. Most NIDRR grantees are universities or providers of rehabilitation or related

services. NIDRR’s largest funding programs are the Rehabilitation Research and Training Centers

(RRTCs) and Rehabilitation Engineering Research Centers (RERCs). NIDRR also makes awards for

information dissemination and utilization centers and projects, field initiated projects, research and

development projects, advanced research training projects, Mary E. Switzer fellowships and NIDRR

scholars, small business innovative research, and model systems of care. NIDRR also administers the

State Technology Assistance Projects, the Assistive Technology Loan Funds, and the Disability and

Business Technical Assistance Centers.

Disability and Rehabilitation Research Projects

The Disability and Rehabilitation Research Projects (DRRP) program allows for projects with special

emphasis on research, demonstrations, training, dissemination, utilization, and technical assistance.

Projects may include combinations of these activities. True to the mission of NIDRR, these projects

may develop methods, procedures, and rehabilitation technology to assist in achieving the full inclusion and integration into society, employment, independent living, family support, and economic and

social self-sufficiency of individuals with disabilities, especially individuals with the most significant

disabilities, or to improve the effectiveness of services authorized under the Rehabilitation Act.

Model Systems

NIDRR administers programs that have become world-renowned model systems of care for persons

with spinal cord injuries, burns, and traumatic brain injuries. The Model Systems establish innovative

projects for the delivery, demonstration, and evaluation of comprehensive medical, vocational, and
other rehabilitation services. The work of the Model Systems begins at the point of injury and ends

with successful re-entry into full community life. These projects collect and contribute data on patient

characteristics, diagnoses, causes of injury, interventions, outcomes, and costs to a uniform national

database; participate in collaborative research with other Model System centers; and coordinate research efforts with other related grant recipients.

Advanced Rehabilitation Research Training Projects

The Advanced Rehabilitation Research Training (ARRT) Program (formerly known as the Research

Training Grants Program) expands the capacity of the field of rehabilitation research by providing

advanced training opportunities. These projects provide rehabilitation research training for persons

with clinical or other experience, who may be lacking certain formal research training. Grants are made

to institutions to recruit qualified persons with doctoral or similar advanced degrees with clinical,

management, or basic science research experience, and prepare them to conduct independent research

on problems related to disability and rehabilitation. This research training may integrate disciplines,

teach research methodology in the environmental or new paradigm context, and promote the capacity

for Disability Studies and rehabilitation science. These training programs must operate in interdisciplinary environments and provide training in rigorous scientific methods.

Rehabilitation Research and Training Centers

NIDRR’s Rehabilitation Research and Training Centers (RRTCs) conduct coordinated and integrated

advanced programs of research targeted toward the production of new knowledge, which may improve rehabilitation methodology and service delivery systems, alleviate or stabilize disabling conditions, or promote maximum social and economic independence for persons with disabilities. Operated

in collaboration with institutions of higher education or providers of rehabilitation or other appropriate

services, RRTCs serve as centers of national excellence in rehabilitation research. Also, they are

national or regional resources for research information for individuals with disabilities and the parents,

family members, guardians, advocates, or authorized representatives of the individuals. These centers

also conduct related training programs, including graduate, pre-service and in-service training. The

centers also disseminate and promote the utilization of research findings.

Rehabilitation Engineering Research Centers

Rehabilitation Engineering Research Centers (RERCs) conduct programs of advanced research of an

engineering or technical nature designed to apply advanced technology, scientific achievement, and

psychological and social knowledge to solve rehabilitation problems and remove environmental

barriers. Each center is affiliated with one or more institutions of higher education or nonprofit organizations. The RERCs’ work in a rehabilitation setting provides an environment for cooperative research

and the transfer of rehabilitation technologies into rehabilitation practice. Involved at both the individual and systems levels, RERCs seek to find and evaluate the newest technologies, products, and

methods that ultimately can benefit the independence of persons with disabilities and the universal

design of environments for all people of all ages. The centers also exchange technical and engineering

information worldwide and improve the distribution of technological devices and equipment to individuals who need them.
State Technology Assistance Projects

This program supports statewide, consumer-driven, technology-related assistance networks for individuals of all ages and disabilities. States and territories are eligible to apply for one grant per entity

which spans a total of ten years of Federal funding. The first phase is a development grant and lasts for

three years. The second phase is known as the first extension and can last for two more years. The

third and final phase is known as the second extension and lasts for five additional years. The Assistive

Technology Act of 1998 (AT Act) authorized three additional years for States that have completed ten

years, at a reduced funding level. Several states have received one-year alternative financing projects

aimed at providing financial assistance in the purchase of assistive technology. Projects work with

public and private lenders in their states.

Fellowships

Fellowships, named for the late Mary E. Switzer, give individual researchers the opportunity to develop new ideas and gain research experience. There are two levels of fellowships: Distinguished

Fellowships and Merit Fellowships. Distinguished Fellowships go to individuals of doctorate or

comparable academic status, who have had seven or more years of experience relevant to rehabilitation

research. Merit Fellowships are given to persons with rehabilitation research experience, but who do

not meet the qualifications for Distinguished, usually because they are in earlier stages of their careers.

Fellows work for one year on an independent research project of their design.

NIDRR Scholars

The Scholars program attempts to build research capacity by recruiting undergraduates with disabilities

to work in NIDRR-funded Centers and projects and introduces them to disability and rehabilitation

research issues. Scholars gain work experience and participating centers receive a small stipend. This

program is an innovative approach aimed at generating interest in research careers for persons with

disabilities.

ADA Technical Assistance Projects

NIDRR administers a network of grantees to provide information, training, and technical assistance to

businesses and agencies with responsibilities under the Americans with Disabilities Act (ADA). Ten

regional Disability and Business Technical Assistance Centers (DBTACs) are funded to provide

information and referral, technical assistance, public awareness, and training on all aspects of the

ADA. Several National Training Projects target particular groups, organizations, or subject areas for

ADA training and the ADA Technical Assistance coordinator contract assists all of the grantees with

their activities.

Small Business Innovative Research

Small Business Innovative Research (SBIR) grants help support the production of new assistive and

rehabilitation technology. This two-phase program takes a product from development to market readiness.
NIDRR Contracts

Through its contracts, NIDRR seeks improved methods, systems, products, and practices to add to its

work. The contracts are for specific activities related to management, research, and information dissemination.

NARIC and the NIDRR Program Directory

The Program Directory is compiled by the National Rehabilitation Information Center (NARIC).

NARIC functions as NIDRR’s library, providing the rehabilitation community with information and

referral services to help locate pertinent research related to specific areas of expertise. Since 1977,

NARIC has been the primary source of rehabilitation and disability information generated by NIDRR

funds, with special priority services to NIDRR staff and NIDRR-funded project staff.

NARIC also produces a companion to the Program Directory, which is the Compendium of Products

by NIDRR Grantees and Contractors. Copies of NIDRR-supported research products are received by

NARIC and added to the reference collection and Compendium database. Information about holdings

are available online at http://www.naric.com.

Neither NARIC nor NIDRR assumes liability for the Directory’s contents or the use thereof. NARIC

does not evaluate or certify the programs or products of the organizations listed in the Directory.

This Directory is not intended for use as a fiscal document to show how NIDRR funds are allocated;

its purpose is to display the range of programs that NIDRR supports. This listing is current as of

October 1, 2002.

NARIC operates under U.S. Department of Education contract ED-02-CO-0002.
Employment Outcomes

NIDRR seeks to improve employment outcomes for people with disabilities by

funding research into a wide spectrum of employment and disability issues,

including economics; Federal, State, and community employment programs;

accommodation; technology; education; and ergonomics and the work environment.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Disability and Rehabilitation Research Projects .................................................................................. 14

Field-Initiated Projects (FIPs) .............................................................................................................. 19

Small Business Innovative Research (SBIR), Phase I ......................................................................... 31

Small Business Innovative Research (SBIR), Phase II ........................................................................ 33

Employment Outcomes 1-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Arkansas

Rehabilitation Research and Training Center on Improving Vocational

Rehabilitation Services for Individuals Who Are Deaf or Hard of

Hearing

University of Arkansas/Little Rock

College of Education

4601 West Markham Street

Little Rock, AR 72205

dwatson@comp.uark.edu

http://www.uark.edu/deafrtc

Principal Investigator: Douglas Watson, PhD

Public Contact: 501/686-9691; Fax: 501/686-9698

Project Number: H133B010501

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $600,000; FY 02 $600,000

Abstract: This program enhances the rehabilitation outcomes of persons who are deaf or hard of

hearing who are served by VR and related employment programs. When appropriate, the unique needs

of specific subgroups within this diverse and heterogeneous population are investigated. The ultimate

goal of these efforts is to improve the capacity of the VR system and related programs to address the

career preparation, entry, maintenance, and advancement, as well as the community living needs, of the

target population. Research activities include: investigating the impact of changes in federal employment and rehabilitation legislation and policy on the delivery of services to the target population;

investigating the impact of business practices that contribute to accessible work and workplace supports to enhance the employment of the target population; and identifying, developing, and assessing

rehabilitation-related innovations that enhance employment and community living outcomes of the

target population.
1-4 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

California

Research and Training Center for Persons Who Are Hard of Hearing or

Late Deafened

Alliant University Foundation

California School of Professional Psychology

6160 Cornerstone Court East

San Diego, CA 92121-3725

rrtc@alliant.edu

http://www.hearinghealth.org

Principal Investigator: Raymond J. Trybus, PhD

Public Contact: 858/623-2777, ext. 390 (V); 800/432-7619 (TTY); 858/554-1540 (TTY); Fax: 858/

642-0266

Project Number: H133B70016

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 97 $499,911; FY 98 $499,911; FY 99 $499,911; FY 00 $499,911; FY 01

$499,911; FY 02 (No-cost extension through 3/31/2003)

Abstract: This Center implements a series of projects involving the impact of hearing loss on workplace and personal adjustment issues through collaboration with business, professional, and consumer

organizations. The primary target populations are accessed through a network of consumer organizations, collaborating companies, and service agencies and associations. Project examples include the

identification of factors that have a negative impact on the employment status of people who are hard

of hearing or late deafened. Data sources include affiliations with Veteran’s Affairs hospitals, local

minority communities, and multiple consumer organizations. Interventions include psycho-educational

training sessions with consumers and family members, consultations with businesses, and presentations

to key individuals and groups such as labor union officials, employee assistance counselors, and

psychological and public health professionals. Interventions include “rights training” in relation to the

ADA, and focus on assistive technologies. The project provides workshops for families and employers, establishes support groups for people with cochlear implants, and creates a family life center

project: a “one-stop shopping” facility where individuals who are hard of hearing or late deafened can

obtain a variety of interventions, information, and guidance regarding services and devices. Dissemination includes information on the ADA and Tech Act. Training targets groups, including employers,

consumers, and human resource organizations.
Employment Outcomes 1-5

Rehabilitation Research and Training Centers (RRTCs)

Hawaii

National Center for the Study of Postsecondary Educational Supports:

A Rehabilitation Research and Training Center

University of Hawaii at Manoa

Center on Disability Studies/University Affiliated Program

1776 University Avenue/UA4-6

Honolulu, HI 96822

stodden@hawaii.edu; huap@hawaii.edu

http://www.rrtc.Hawaii.edu

Principal Investigator: Robert Stodden, PhD, 808/956-9199

Public Contact: Juana Tabali-Weir, Administrative Assistant; Valerie Shearer, Pacific Rim and Grants

Coordinator, 808/956-3975 (Tabali-Weir); 808/956-2673 (Shearer); Fax: 808/956-5713

Project Number: H133B980043

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 98 $595,000; FY 99 $605,000; FY 00 $600,000; FY 01 $600,000; FY 02

$600,000

Abstract: The research this project conducts on educational supports is designed to increase access to

postsecondary education programs and improve outcomes for people with disabilities. The research

includes: (1) examining and evaluating the current status of educational supports, including (a) individual academic accommodations, (b) adaptive equipment, (c) case management and coordination, (d)

advocacy, and (e) personal counseling and career advising; (2) identifying effective support practices

and models of delivery that contribute to successful access, performance, and retention and completion

of postsecondary programs; (3) identifying specific barriers to the provision of disability-related services, including policy and funding requirements; (4) assessing the effectiveness of promising educational practices and disability-related services that are important to career mobility and success in the

workplace; (5) testing the effectiveness of specific models of delivery that are believed to increase the

accessibility of educational supports and innovative technologies; (6) identifying the types of educational and transitional assistance that postsecondary programs provide to improve educational and

subsequent labor market success; (7) providing training, technical assistance, and information to

support personnel, public and private rehabilitation personnel, career placement specialists, and students with disabilities based on the findings and implications of the research program; and (8) implementing a consumer-driven empowerment evaluation plan for assessment of the Center’s progress in

achieving its goals. Additional goals include conducting national surveys and field studies within

diverse postsecondary educational settings, and implementing an innovative and integrated training,

technical assistance, and dissemination model to ensure the application and sustainability of researchproven policy and practice. This project participates in the NIDRR Scholars program, providing

motivated undergraduates with internship experience in disability research.
1-6 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Iowa

Rehabilitation Research and Training Center on Workforce Investment

and Employment Policy for Persons with Disabilities

University of Iowa College of Law

Law Health Policy and Disability Center

100 Gilmore Hall

Iowa City, IA 52242

mmorris@ncbdc.org

http://www.its.uiowa.edu/law/lhpdc/rrtc/index.html

Principal Investigator: Michael Morris; Peter Blanck; Michael Collins; Robert Silverstein

Public Contact: Michael Morris, Project Director, 202/521-2930; Fax: 202/218-7297

Project Number: H133B010102

Start Date: November 1, 2001

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $588,756

Abstract: This Center helps expand, improve, and modify disability policy and other more general

policies in order to improve the employment status of Americans with disabilities and increase their

independence and self-sufficiency. Based on research from this project and other NIDRR-funded

projects, this project establishes an information and technical assistance resource to government leaders

and decision makers at state and federal levels, individuals with disabilities, parents and family members, and other interested parties, offering new and revised approaches to workforce development and

employment policy. Studies conducted by this project include: (1) an analysis of the relationship

between select federal and state policies upon the employment of people with disabilities, (2) an

analysis of the policy-based implications of outcome-based reimbursement on the delivery of employment and rehabilitation services to people with disabilities, and (3) an analysis of the effect of civil

rights protections and multiple environmental factors on promoting or depressing the employment

status of people with disabilities. The Center actively seeks to be outcome-focused and involve individuals with disabilities, parents, and family members in all facets of project activities, including

training, research, information dissemination, and technical assistance.
Employment Outcomes 1-7

Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center on State Systems and

Employment

Institute for Community Inclusion

University of Massachusetts/Boston

100 Morrissey Boulevard

Boston, MA 02125

ici@umb.edu

http://www.communityinclusion.org/rrtc

Principal Investigator: William E. Kiernan, PhD

Public Contact: John Butterworth, PhD, 617/287-4357; Fax: 617/287-4352

Project Number: H133B980037

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000; FY 02

$700,000

Abstract: This Center identifies effective practices in coordinated employment efforts and facilitates

such development at local, regional, and state levels. It also influences policy, practice, and perceptions

on the national level. Project activities include investigations, technical assistance, and public policy

reviews focused on: (1) examining state service systems, including VR, mental health, mental retardation, employment and training service (including one-stop career centers and welfare-to-work programs), and education to document promising policies and practices reflecting integrated and coordinated approaches to employment of people with disabilities; (2) documenting actual employment

outcomes for people with disabilities through the analysis of national, state, and local data collection

systems; (3) documenting strategies state agencies use for overcoming barriers to employment at the

state and local levels; (4) examining, documenting, and disseminating practices at the state level that

respond to the employment and support needs of SSI and SSDI beneficiaries; and (5) reviewing and

evaluating strategies and approaches to develop a more integrated employment approach at the federal

and state levels, in order to enhance the employment of people with disabilities.
1-8 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Mississippi

RRTC on Improving Vocational Rehabilitation Services for Individuals

Who Are Blind or Have Severe Visual Impairments

Mississippi State University

P.O. Box 6189

Mississippi State, MS 39762

schaefer@ra.msstate.edu

http://www.blind.msstate.edu

Principal Investigator: J. Elton Moore, EdD, 662/325-2001

Public Contact: Kelly Schaefer, 662/325-7825 (V); 662/325-8693 (TTY); Fax: 662/325-8989

Project Number: H133B010101

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $600,000; FY 02 $600,000

Abstract: This program includes a variety of research and training activities that focus on improving

VR services for individuals who are blind or have severe visual impairments. Activities include: (1)

investigating and documenting the impact of changes in disability and employment legislation on the

unique employment-related needs of individuals who are blind or have visual impairments, as well as

their impact on service delivery options and policy; (2) investigating, documenting, and analyzing

existent state and federal data sets to determine different employment outcomes for persons who are

blind or have visual impairments and the relationship of the outcomes to client and service provider

characteristics; (3) investigating and documenting how state VR agencies, other public agencies, and

private service providers overcome environmental barriers in order to improve employment outcomes

for individuals who are blind or have visual impairments; (4) developing a national information and

resource referral database for the training needs of state business enterprise program facilities, developing and delivering training programs to meet the identified training needs, and developing measures

that can be used to evaluate the efficacy of the training; (5) conducting three conferences to train VR

staff on state-of-the-art information and computer technology for individuals who are blind or have

visual impairments; and (6) conducting a coordinated and advanced program of training in rehabilitation research focusing on blindness and low vision, including training in applied research methodology

that is designed to increase the number of qualified doctoral-level researchers working in the area of

blindness rehabilitation.
Employment Outcomes 1-9

Rehabilitation Research and Training Centers (RRTCs)

Montana

Rehabilitation Research and Training Center on Rural Rehabilitation

Services

University of Montana

52 Corbin Hall

Missoula, MT 59812-7056

muarid@selway.umt.edu

http://ruralinstitute.umt.edu/rtcrural

Principal Investigator: Tom Seekins, PhD

Public Contact: 888/268-2743 (V, information service only); 406/243-5467 (V/TTY); Rural

Disability Information Network [RUDI] BBS numbers: 406/243-2318; 800/961- 9610 (In MT

and WY); Fax: 406/243-2349

Project Number: H133B70017

Start Date: September 1, 1997

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 97 $500,000; FY 98 $550,000; FY 99 $555,000; FY 00 $500,000; FY 01

$550,000; FY 02 (No-cost extension through 9/29/2002)

Abstract: This RRTC conducts and disseminates research and provides training that improves the

capacity of rural environments to support people with disabilities in living and working independently.

Rural Employment and Economic Development Projects concentrate on employment and VR service

needs, including self-employment as a vocational option for rural people with disabilities. These

project components explore the role of rural economic development in meeting the needs of people

with disabilities, and ways that rural citizens with disabilities can assume community leadership. Rural

Community Development, Independent Living, and Telecommunications components look at how

rural independent living services, transportation services, accessible housing, and telecommunications

are funded, and ways to improve rural access to these services. Health Care projects conduct research

to improve access to rural health care services, including health promotion activities that might reduce

the incidence of secondary conditions. American Indian project components work with American

Indian tribes to develop culturally sensitive ways to discuss disability issues, such as ensuring environmental, programmatic, and social access for tribal members with disabilities; and developing appropriate long-term care options for elders and people with disabilities or chronic conditions. Methodology:

the RRTC approaches its research areas from a community psychology perspective. Cross-cutting

measures of importance include participation, engagement, and a psychological sense of community.

This project participates in the NIDRR Scholars program, providing motivated undergraduates with

internship experience in disability research.
1-10 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center for Economic Research

on Employment Policy for Persons with Disabilities

Cornell University

Program on Employment and Disability

School of Industrial and Labor Relations

106 ILR Extension Building

Ithaca, NY 14853-3901

smb23@cornell.edu

http://www.ilr.cornell.edu/ped/dep/rrtc.html

Principal Investigator: Susanne Bruyère, PhD; Richard Burkhauser, PhD; David Stapleton, PhD

Public Contact: Susanne Bruyère, PhD, 607/255-7727 (V); 607/255-2891 (TTY); Fax: 607/255-

2763

Project Number: H133B980038

Start Date: December 16, 1998

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000; FY 02

$700,000

Abstract: Using principles of economics, this project conducts policy research on how environmental

factors influence the work outcomes of people with disabilities. Research also addresses critical aspects

of employment outcomes, recognizing the heterogeneity of people with disabilities, and explains the

importance of interactions among the multiplicity of programs intended to meet the employment needs

of people with disabilities. Components include: (1) a comprehensive analysis, using existing panel

data, of the current employment status of people with disabilities; (2) a longitudinal analysis of the

effects of labor market change on the employment and earnings of people with disabilities; (3) a

longitudinal analysis of return-to-work after the onset of a disability; (4) a longitudinal analysis of the

impact of civil rights protections on the employment and earnings of people with disabilities; (5)

identification and analysis of policies that foster or impede the participation of transitioning students in

rehabilitation or employment service programs; and (6) analysis of emerging and important issues

affecting the employment of people with disabilities. This project participates in the NIDRR Scholars

program, providing motivated undergraduates with internship experience in disability research.
Employment Outcomes 1-11

Rehabilitation Research and Training Centers (RRTCs)

Ohio

Rehabilitation Research and Training Center on Drugs and Disability

Wright State University

School of Medicine

Substance Abuse Resources and Disability Issues (SARDI)

P.O. Box 927

Dayton, OH 45401-0927

sardi@wright.edu

http://www.sardi.wright.edu

Principal Investigator: Dennis C. Moore, EdD

Public Contact: Jo Ann Ford, 937/775-1484 (V/TTY); Fax: 937/775-1495

Project Number: H133B70018

Start Date: October 1, 1997

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 97 $499,369; FY 98 $602,294; FY 99 $602,294; FY 00 $603,663; FY 01

$603,663; FY 02 (No-cost extension through 2/28/2003)

Abstract: This project conducts epidemiological and evaluative studies of substance abuse and substance abuse services for consumers of state VR programs. Activities address substance abuse as it coexists with other disabilities; all components of the RRTC are designed to interrelate and synergistically

build on each other. The research components include longitudinal and multisite studies to address

more advanced research questions, and quantitative/qualitative methods to investigate VR issues for

people with HIV. The training components use a variety of materials, venues, and trainers in order to

address needs within pre- and in-service populations. Training and dissemination components also

include extensive use of distance learning media, especially use of the Internet to provide professionals

and consumers with timely and relevant information. Stakeholders’ concerns and interests are addressed by several mechanisms, including a formal subcontract with the National Association on

Alcohol, Drugs, and Disability. This project is one component of a number of state and federally

funded entities in the SARDI (Substance Abuse Resources & Disability Issues) Center. Multiple

collaborations are delineated with federal agencies, including the Substance Abuse and Mental Health

Services Administration, as well as professional and consumer organizations, national clearinghouses,

other RRTCs, and institutions of higher education.
1-12 Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs)

Virginia

Rehabilitation Research and Training Center on Workplace Supports

Virginia Commonwealth University

Rehabilitation Research and Training Center on Workplace Supports

1314 West Main Street, Box 842011

Richmond, VA 23284-2011

tcblanke@saturn.vcu.edu

http://www.worksupport.com

Principal Investigator: Paul Wehman, PhD

Public Contact: Valerie Brooke, Associate Director, 804/828-1851 (V); 804/828- 2494 (TTY); Fax:

804/828-2193

Project Number: H133B980036

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 98 $699,992; FY 99 $699,992; FY 00 $699,992; FY 01 $699,992; FY 02

$699,992

Abstract: This Center helps to increase the national employment rate among people with disabilities

by identifying factors in the work environment that inhibit or enhance employment outcomes and by

sharing the results with the business community. Researchers: (1) analyze existing or new financial

incentives to find those that encourage enterprises to hire or retrain workers with disabilities; (2)

measure the effectiveness of disability management and return-to-work strategies; (3) assess employers’ need for information, training, and resources; (4) conduct, in business settings, interventions that

respond to employer needs; (5) analyze the interventions to determine their effectiveness; (6) determine

the impact of changes in work structures such as telecommuting and self-employment on the employment outcomes of people with disabilities. Stakeholders who benefit from these research, training,

technical assistance, and dissemination efforts include business personnel; rehabilitation service personnel; federal and state policy-makers; people with disabilities; their guardians, advocates, and authorized

representatives; students; and the general public.
Employment Outcomes 1-13

Rehabilitation Research and Training Centers (RRTCs)

Wisconsin

Rehabilitation Research and Training Center on Community

Rehabilitation Programs to Improve Employment Outcomes

University of Wisconsin/Stout

Stout Vocational Rehabilitation Institute

College of Human Development

220 Tenth Avenue East

Menomonie, WI 54751

rtc@uwstout.edu

http://www.rtc.uwstout.edu

Principal Investigator: Fredrick E. Menz, PhD

Public Contact: 715/232-1389 (V); 715/232-5025 (TTY); Fax: 715/232-2251

Project Number: H133B980040

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000; FY 02

$700,000

Abstract: This project engages community-based rehabilitation programs (CRPs) and state rehabilitation programs in an effort to open multiple funding sources for rehabilitation and habilitation services

and employment opportunities for people with disabilities. The project includes a series of interrelated

studies directed toward changing outcomes and determining CRP capacities to affect the economic

status of people with disabilities in their communities, and it develops a complementary methodology

for achieving utilization and application of the new knowledge. Primary research tasks: (1) examining

how CRPs are serving people with disabilities from alternate sources of funding; (2) determining the

extent to which consumers pursue and receive services, compared to the intentions of the Rehabilitation Act; (3) exploring what funding, service, and strategy capacities exist to address those intentions

more coherently at the community level; (4) devising and demonstrating practice-program alternatives

that materially improve outcomes from CRPs; and (5) clarifying how CRPs as an industry can be

enjoined as a complementary resource to improve the economic and community integration status of

people with disabilities. The project establishes a publicly accessible national database of core information on CRPs, and includes training, technical assistance, and dissemination activities.
1-14 Employment Outcomes

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Iowa

Model Distance-Learning Computer Training Program for Blind and

Visually Impaired Individuals

Iowa Department for the Blind

524 Fourth Street

Des Moines, IA 50309

assist@blind.state.ia.us

http://www.blind.state.ia.us/assist

Principal Investigator: Kent A. Farver

Public Contact: 515/281-1256; Fax: 515/281-1263

Project Number: H133A010104

Start Date: December 1, 2001

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 01 $299,565; FY 02 $299,463

Abstract: This project creates a model distance-learning program that delivers computer training to

people who are blind or who have visual impairments. The purpose of this program is to increase IT

educational opportunities and employability in the IT field. Project objectives include: (1) developing a

model distance-learning computer training program for people who are blind that results in employment in the IT field; (2) developing 13 distance-learning computer training courses for individuals who

are blind or who have visual impairments and VR professionals; (3) training and preparing 150 individuals who are blind or who have visual impairments for Microsoft Office certification and thus

prepare them for entry-level IT positions; (4) training 50 people who are blind and VR professionals to

provide computer training to job seekers who are blind, thus increasing future IT educational opportunities for people who are blind and those who have visual impairments; and (5) disseminating training

materials and research results to agencies serving individuals who are blind or who have visual impairments.
Employment Outcomes 1-15

Disability and Rehabilitation Research Projects

Iowa

I.T. Works

University of Iowa

Law, Health, Policy, and Disability Center

431 Boyd Law Building

Iowa City, IA 52242

http://www.its.uiowa.edu/law

Principal Investigator: Peter D. Blanck, PhD, JD, 319/335-9043

Public Contact: Michael Morris; James Schmeling, 202/521-2930 (Morris); 319/335- 8459

(Schmeling); Fax: 319/335-9098 (Blanck)

Project Number: H133A011803

Start Date: November 1, 2001

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $299,935; FY 02 $299,724

Abstract: The goal of the I.T. Works project is to identify barriers to and facilitators of the hiring,

retention, advancement, and wages of individuals with disabilities. Research also shows that the

percentage of working-age individuals with disabilities in full- or part-time positions is substantially

lower than the percentage of working-age people without a disability, and there is a demand for trained

IT workers. Increasing the employment of individuals with disabilities in IT-related jobs would increase the employment of individuals with disabilities and reduce the shortage for trained IT workers.

Research activities for this project include a theoretical model in which predictive measures include

environmental factors, organizational factors, attitudinal factors, and individual characteristics. Outcome measures in the model include hiring rate, advancement rate, retention rate, and wages of individuals with disabilities. Training activities allow for the distribution of the research findings to diverse

target audiences, including employers, IT trainers and professionals, persons with disabilities in diverse

employment settings, other researchers, and relevant policy-makers. Target audiences also include IT

employers; IT training certification bodies; human resource managers; community colleges and university continuing education programs; and Centers for Independent Living and other disability-related

organizations.
1-16 Employment Outcomes

Disability and Rehabilitation Research Projects

Mississippi

Persons Aging with Hearing and Vision Loss

Mississippi State University

P.O. Box 6189

Mississippi State, MS 39762

bjlejeune@colled.msstate.edu

http://www.blind.msstate.edu

Principal Investigator: B.J. LeJeune, RTC, CRC

Public Contact: 662/325-2001; Fax: 662/325-8989

Project Number: H133A020701

Start Date: November 1, 2002

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $500,000

Abstract: This project investigates strategies to improve outcomes for persons who have a sensory

disability and acquire a second as a result of the aging process. The project conducts a variety of

research, development, training, and dissemination activities and evaluates both technology and model

service delivery approaches for improving employment and community integration options. A Participation Action Research team provides guidance and direction. The project solicits direct input from

key stakeholders as part of the ongoing planning, development, and implementation of research activities. These activities include the use of focus groups, a panel of experts, and a study sample that

includes a nationally representative sample of older individuals who are blind or visually impaired and

losing their hearing, and those who are deaf or hard of hearing and losing their vision. This is a collaborative project of the Rehabilitation Research and Training Center (RRTC) on Blindness and Low

Vision at MSU, the RRTC on Persons Who Are Hard of Hearing or Late Deafened at the National

University, and the Helen Keller National Center for Deaf-Blind Youths and Adults.
Employment Outcomes 1-17

Disability and Rehabilitation Research Projects

Missouri

Preparing Avenues for Competitive Employment in Information

Technology (PACE-IT) Project

University of Missouri/Columbia

Educational and Counseling Psychology

205 Lewis Hall

Columbia, MO 65211

hollidayg@missouri.edu

http://paceit.missouri.edu

Principal Investigator: Greg Holliday, PhD, 573/882-8329

Public Contact: Lee Henson, Project Coordinator, 573/884-7278; Fax: 573/884-3399

Project Number: H133A011802

Start Date: November 1, 2001

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $293,183; FY 02 $290,191

Abstract: Preparing Avenues for Competitive Employment in Information Technology (PACE-IT)

develops a comprehensive, person-centered system that assists local students with disabilities in their

transition to professional employment in IT- related careers following graduation. The project ensures

that students with disabilities at the University of Missouri-Columbia (MU) engage in experiential

opportunities in IT-related work settings with appropriate support. Participants also receive individualized accommodations, electronic portfolios, and professional mentoring in their chosen fields to enable

them to be competitive in the IT job market upon graduation. The partnership involves university

student services; departments of state government, agencies, government officials; and area businesses

(totaling 21 entities).
1-18 Employment Outcomes

Disability and Rehabilitation Research Projects

New York

A Four-Year Research and Demonstration Project to Address Ways to

Improve the Employment Practices Covered by Title I of the Americans

with Disabilities Act (ADA)

Cornell University

106 ILR Extension Building

Ithaca, NY 14853-3901

smb23@cornell.edu

http://www.ilr.cornell.edu/ped

Principal Investigator: Susanne Bruyère, PhD, 607/255-7727 (V)

Public Contact: Deborah Fisher, 607/255-3079 (V); 607/255-2891 (TTY); Fax: 607/255-2763

Project Number: H133A70005

Start Date: October 1, 1997

Length: 48 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 97 $249,958; FY 98 $249,804; FY 99 $249,804; FY 00 $249,855; FY 01 (Nocost extension through 1/31/02) FY 02 (No-cost extension through 9/30/02)

Abstract: This project addresses ways to improve the employment practices covered by Title I of the

ADA. The purpose of this effort is to investigate the impact of the ADA on the employment practices

of private sector small, medium, and large businesses. The intended outcome is to assist in the identification of employment practices that have been the most challenging in implementing the ADA, and to

identify interventions that can be used by private sector employers and people with disabilities to

address these challenging employment practices. Employment policy and practices that enhance both

the hiring and retention of workers with disabilities are examined. A representative sample of small,

medium, and large private sector employers was selected for study from the membership of the Washington Business Group on Health and the Society for Human Resources Management. A survey was

conducted of almost 1,000 private- sector employers and the results have been used to identify specific

interventions to address remaining barriers. The study is conducted in collaboration with the Washington Business Group on Health, the Society for Human Resource Management, and The Lewin Group.
Employment Outcomes 1-19

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

Arkansas

Reaching Hard of Hearing Workers in the Mainstream: Implications

for Consumers and Service Professionals

University of Arkansas

College of Education and Health Professionals

4601 West Markham Street

Little Rock, AR 72205

dwatson@uark.edu

http://www.uark.edu/deafrtc

Principal Investigator: Douglas Watson, PhD

Public Contact: 501/686-9691; Fax: 501/686-9698

Project Number: H133G010156

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: This project investigates the utilization of rehabilitation services by hard of hearing individuals. Most existing studies of this population have been limited to convenience samples, a methodological approach that is likely to present a fragmented and potentially inaccurate picture of these workers

and their VR needs. Research with representative samples of hard-of-hearing workers is critically

needed so results can be obtained that are more valid. Additionally, the project studies the existing

practices and policies used by VR professionals as they deliver rehabilitation and employment services

to hard-of-hearing adults. These professionals can offer valuable insights into their abilities to serve this

population.
1-20 Employment Outcomes

Field-Initiated Projects (FIPs)

Illinois

Comparison of Two Employment Models for Consumers with Severe

Mental Illness

The Thresholds

4101 North Ravenswood Avenue

Chicago, IL 60613

taffy@thresholds.org

Principal Investigator: Taffy (M.L.) McCoy, PhD

Public Contact: 773/880-6260, ext. 230; Fax: 773/880-5755

Project Number: H133G90155

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $150,000; FY 00 $150,000; FY 01 $150,000; FY 02 (No-cost extension

through 7/1/03)

Abstract: This project conducts a randomized controlled trial comparing supported employment with

well-established, comprehensive psychiatric rehabilitation approaches. It also investigates interactions

between consumer characteristics and employment approaches, toward an understanding of the best

VR strategies for people of color, especially people from the African American community. This study

compares the effectiveness of two important, popular employment models for people with Severe

Mental Illness (SMI). The Diversified Placement Approach (DPA) offers a gradual, stepwise preparation for competitive employment, including prevocational training, agency-run business opportunities,

group placements, individual placements, and ultimately movement into independent employment, all

available on a flexible, individualized basis without fixed time limits. The second model is a supported

employment model developed in New Hampshire, known as Individual Placement and Support (IPS).

IPS is a supported employment approach for individuals with SMI. As a consumer-oriented approach,

key features of the IPS model include individualized planning with careful attention to consumer

preferences in the job matching process, close coordination between rehabilitation and treatment, and

rapid job search.
Employment Outcomes 1-21

Field-Initiated Projects (FIPs)

Massachusetts

An Exploratory Study of the Factors Determining the Vocational

Recovery of People with Psychiatric Disabilities

Boston University

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue West

Boston, MA 02215-1303

zlatka@bu.edu

http://www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133G010113

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $148,989; FY 02 $149,932

Abstract: This project studies factors that determine the vocational recovery of persons with psychiatric disabilities. Vocational recovery is examined as an important aspect of recovery from serious mental

illness and is defined as preserving, regaining, or acquiring competitive employment despite being

affected by a disabling psychiatric condition. The project seeks to explore the major factors that promote vocational recovery from serious mental illness based on the experiences of individuals who

made the transition from severe work dysfunction, measured through the receipt of Social Security

income (SSI/SSDI), to full- or part-time sustained competitive employment. Activities include: (1)

studying the major subjective and objective factors influencing mental health consumers’ capacity to

overcome severe work dysfunction and sustain vocational recovery; (2) studying the indicators for

consumers’ readiness for financial self-sufficiency examined as an essential factor determining vocational recovery from serious mental illness; and (3) disseminating the results of the study to various

vocational and psychosocial rehabilitation programs, self-help groups, the broad mental health community, employers, and the general public.
1-22 Employment Outcomes

Field-Initiated Projects (FIPs)

Massachusetts

Job Retention Factors for Homeless People with Significant Disabilities

Sargent College

Boston University

635 Commonwealth Avenue

Boston, MA 02215

nhursh@bu.edu

Principal Investigator: Norman Hursh, ScD

Public Contact: 617/353-2709; Fax: 617/353-8914

Project Number: H133G020092

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $150,000

Abstract: This project studies the major factors that promote or limit job retention and sustained

employment for approximately 200 homeless individuals with significant disabilities who have successfully transitioned from unemployment to competitive employment and permanent housing. Unemployment rates, wage levels, benefits, and educational levels for individuals with disabilities are unacceptably low when compared to the general population and access to quality jobs with decent wages is

lower still for individuals with disabilities who are homeless, or who reside in supported or subsidized

housing. The goals of this project are: (1) to study the relationship between successful job retention and

the individual characteristics and coping strategies of homeless people with significant disabilities; (2)

to study the relationship between successful job retention and different workplace supports, program

services, and homeless resources used by homeless people with disabilities; (3) to study how specific

individual characteristics, and different workplace and program supports and resources, interact to

influence job retention and sustained employment; and (4) to disseminate results of the study to employment and vocationa1 rehabilitation programs, homeless resources, workforce development programs, advocacy groups, and interested stakeholders.
Employment Outcomes 1-23

Field-Initiated Projects (FIPs)

Montana

Self-Employment Technology Transfer (SETT)

University of Montana

Rural Institute on Disabilities

52 Corbin Hall

Missoula, MT 59812

nancy@selway.umt.edu

http://ruralinstitute.umt.edu

Principal Investigator: Nancy Arnold, PhD

Public Contact: 406/243-2469; Fax: 406/243-2349

Project Number: H133G000189

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $149,970; FY 01 $149,487; FY 02 $149,986

Abstract: The Self-Employment Technology Transfer (SETT) project has developed and field tested a

VR self-employment support model based on extensive research. This project is designed to develop,

demonstrate, and evaluate methods for facilitating the widespread adoption by practicing VR counselors of this empirically derived model of standards and practices in a cost-effective manner and in a

relatively short time. It is estimated that achieving this goal benefits 25,560 to 62,850 consumers of VR

services annually. Further it is believed that such a technology transfer model for disseminating empirically derived social technology from research into practice has the potential to shape the content,

methods, and goals of future disability and rehabilitation research. There has been an explosion of

interest in self-employment for people with disabilities. More than a half-million people with disabilities report owning their own businesses and people with disabilities are nearly twice as likely to be

self-employed as those in the general population. While self-employment is not for everyone, it clearly

is a viable option used by many. Yet, VR agencies nationally help fewer than 2.5 percent of their

consumer achieve self-employment. Research shows that few of the estimated 9,500 practicing VR

counselors have the knowledge or skills to support consumers who choose to pursue self-employment.

Anecdotal reports indicate that VR agencies and staff have a significant interest in developing methods

to respond to this consumer demand. While a few programs have served as models for promoting selfemployment, none are designed specifically for VR counselors or organized for such wide- scale

dissemination.
1-24 Employment Outcomes

Field-Initiated Projects (FIPs)

New York

Medication Management and Successful Work Transition in Persons

with HIV/AIDS

Center for Essential Management Services

420 Jericho Turnpike, Suite 300

Jericho, NY 11753

cems1@prodigy.net

Principal Investigator: David Vandergoot, PhD

Public Contact: 516/827-5960; Fax: 516/938-9477

Project Number: H133G000195

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $149,998; FY 01 $149,998; FY 02 $149,998

Abstract: This project conducts survey research and a series of focus groups with graduates of a

comprehensive VR program. The purpose is to identify effective strategies used by persons with HIV/

AIDS for managing combination antiretroviral medications in the workplace. Men and women with

HIV/AIDS are a population from the new universe of disability; many are from ethnically diverse

backgrounds and are economically disadvantaged. Within this population NIDRR-funded research has

found a high frequency of hidden TBI and a strong correlation between health and employment. The

information gleaned from the survey research and focus groups, as well as other research on how

people with HIV/AIDS can maintain their health, is used to create rehabilitation interventions for

people with HIV/AIDS to enter the labor market and sustain employment. Medication management is

conceptualized in its broadest sense to include adherence to prescribed treatment protocols, management of medication side effects and other HIV/AIDS-related symptoms while balancing daily life

roles, routines, activities, expectations, and demands. The effectiveness of these rehabilitation interventions is evaluated in the context of a community-based employment agency in New York City—

Mobilizing Talents and Skills (MTS)—that serves men and women with HIV/AIDS from ethnically

diverse backgrounds. The interventions are expected to enhance the VR services provided by MTS

and combine a series of psycho-educational groups with individualized service coordination and

counseling.
Employment Outcomes 1-25

Field-Initiated Projects (FIPs)

New York

Measuring Employer Openness to Hiring People with Disabilities:

Development of Expanded Labor Market Survey

Syracuse University

Counseling and Human Services

257 Huntington Hall

Syracuse, NY 13244-2340

ddgilbri@syr.edu

http://soeweb.syr.edu/faculty/ddgilbri/nidrr

Principal Investigator: Dennis Gilbride, PhD

Public Contact: 315/443-5264; Fax: 315/443-5732

Project Number: H133G000028

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 00 $149,306; FY 01 $147,650; FY 02 $148,892

Abstract: This project works to understand the labor market in regard to people with disabilities. The

first goal is to identify the key factors that distinguish employers that are authentically open to people

with disabilities throughout the human resource management process, including recruitment, selection,

training, supervision, accommodation, and promotion. The second goal is to develop a simple interview protocol (and supportive training materials) that rehabilitation consumers and counselors can use

as part of an enhanced labor market survey to target employers for placement, employer development,

and consulting efforts based upon that employer’s level of openness. Five objectives help to achieve

these goals: (1) develop and convene a consumer advisory panel; (2) conduct focus groups and interviews with employers in key labor markets; (3) analyze the data to identify key components of openness; (4) present the data to a consumer advisory panel and a practitioner panel to help develop enhanced labor market survey questions, protocols, and training materials; and (5) disseminate the project

results to consumers, practitioners, educators, and employees. Consumers and rehabilitation professionals can use the enhanced labor market survey to understand the openness of employers. The web and

CD-ROM versions of the labor market survey illustrate the key aspects of employer openness with

Quicktime movies of employer statements.
1-26 Employment Outcomes

Field-Initiated Projects (FIPs)

North Carolina

Resolving ADA Employment Discrimination Charges

University of North Carolina

The Cecil G. Sheps Center for Health Services Research

101 Conner Drive

Willowcrest Building #302

UNC-CH CB#3386

Chapel Hill, NC 27599

kathyrn_moss@unc.edu

http://www.adaresearchproject.unc.edu

Principal Investigator: Kathryn E. Moss, PhD

Public Contact: 919/966-6061; Fax: 919/966-1634

Project Number: H133G000132

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 00 $149,925; FY 01 $149,591; FY 02 $149,933

Abstract: The project’s purpose is to assess the impact of the ADA employment discrimination service

system on the lives of people with disabilities, using data from the computerized charge data system of

the U.S. Equal Employment Opportunity Commission (EEOC). Under Title I of the Americans with

Disabilities Act (ADA), individuals who believe they have been discriminated against in employment

on the basis of a disability may file an administrative charge with either the EEOC or a state or local

Fair Employment Practice Agency (FEPA). During the statute’s first decade of operation, the EEOC

and the FEPAs have become a significant service system for people with disabilities, handling an

average of 30,000 Title I claims each year. Recently, landmark Supreme Court decisions interpreting

the ADA, the EEOC’s implementation of a new charge processing policy, and their ambitious new

mediation program have significantly changed the Title I charge process and considerably altered the

landscape in which EEOC offices and FEPAs process Title I charges. The aims of the project, therefore, are as follows: (1) to monitor the evolving implementation of Title I of the ADA by the EEOC

and the FEPAs, (2) to monitor the evolving implementation of the EEOC’s new mediation program,

and (3) to design and disseminate useful and accessible information about the Title I charge process for

people with disabilities and persons who support them.
Employment Outcomes 1-27

Field-Initiated Projects (FIPs)

Ohio

Variables Associated with Vocational Success Among Persons with

Severe Mental Illness: An Empirical Study

Cleveland State University

Department of Social Work

2300 Chester Avenue

Cleveland, OH 44115

m.smith@csuohio.edu

Principal Investigator: Mieko Kotake Smith, PhD

Public Contact: 216/687-4738; Fax: 216/687-5590

Project Number: H133G990036

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 99 $138,332; FY 00 $141,462; FY 01 $144,060; FY 02 (No-cost extension

through 6/30/03)

Abstract: This project (1) examines the relationships between several variables and vocational success

among people with severe and persistent mental illness; and (2) develops a model of how those variables together lead to vocational success in this population. Many attempts have been made to identify

factors associated with vocational success among people with severe mental illness, but no comprehensive portrait of these factors has been developed. The study is carried out at a community employment

collaborative among three community-based rehabilitation service agencies in Cleveland Ohio that

provides a range of vocational services to individuals with severe and persistent mental illness. This

study uses a longitudinal design with three data collection points to follow approximately 300 individuals receiving vocational training; the variables to be examined are in three areas: personal factors, work

environment factors, and other factors. Personal factors include social functioning, symptomatology,

symptom management, and expectations to succeed. Work environment factors include the employers’

knowledge about mental illness, the work environment, and pay. Other factors include the fit between

employee interests and the actual job, and social networks.
1-28 Employment Outcomes

Field-Initiated Projects (FIPs)

Virginia

Self-Employment Development for Individuals with Traumatic Brain

Injury

Brain Injury Association of America, Inc.

105 North Alfred Street

Alexandria, VA 22314

kflippo@biausa.org

http://www.biausa.org

Principal Investigator: Karen Flippo, 703/236-6000, ext. 108

Public Contact: Fax: 703/236-6001

Project Number: H133G020215

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $149,985

Abstract: This project creates self-employment opportunities for individuals with traumatic brain

injuries through inventive, replicable capacity building approaches coupled with high-quality and costeffective technical consultation and program redesign. The research, conducted by the Brain Injury

Association of America and The Rural Institute at the University of Montana, addresses consumer selfdetermination, staff development, dissemination, and capacity building, with significant attention to

consumer choice, minority enrollment, and local collaboration. Staff focus on systemic communitywide capacity building for self-employment, with the assistance of a broad-based culturally, geographically, and disability diverse Advisory Council. Each of the two development communities receives onsite and distance technical training and consultation on business planning, SSA Work Incentives,

financing/alternative funding, and specific supports (assistive/universal technology, self-management

regimens, etc.) for individuals with TBI. The project builds capacity with local CRPs, VR and Work

Force Investment Act offices, medical providers, families, self-advocates, economic development

entities including business incubators and Small Business Development Centers, and Tribal Business

Information Centers.
Employment Outcomes 1-29

Field-Initiated Projects (FIPs)

Virginia

Strategies People with Psychiatric Disabilities Use to Maintain

Employment and Build Careers

CESSI

6858 Old Dominion Drive

McLean, VA 22101

bonnoday@comcast.net

http://www.cessi.net

Principal Investigator: Bonnie O’Day, PhD

Public Contact: 703/845-3436

Project Number: H133G020116

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $150,000

Abstract: This project investigates the strategies individuals with psychiatric disabilities use to maintain employment over time. The majority of individuals with psychiatric disabilities who are working

find their work independently, without the help of specialized employment programs. Little is known

concerning the strategies they use to maintain employment over time. Research that has focused on

psychiatric disability and employment has looked solely at those populations who are currently attending or have attended vocational rehabilitation or specialized employment programs; individuals who

have been most successful at maintaining employment have not been consulted regarding the strategies

that worked best for them. This project explores a number of domains, including: (1) coping with

stigma in the workplace, (2) managing symptoms as well as medications and their side effects, (3)

making decisions regarding disclosure of psychiatric disability in the workplace, (4) negotiating workplace accommodations, (5) developing a social support network, (6) coping with relapse or re-hospitalization with regard to employment, and (7) obtaining education or training (career development). In

addition, the project examines whether those who have found work with the help of professionals and

those who have found work independently use differing strategies to maintain employment. Researchers ascertain the prevalence of various strategies in each group as well as their importance to participants in maintaining employment over time.
1-30 Employment Outcomes

Field-Initiated Projects (FIPs)

Virginia

Telework as an Accommodation for Employees with Disabilities:

Developing Prediction Models for Successful and Satisfying Careers

Virginia Commonwealth University

P.O. Box 980568

Richmond, VA 23284

mwest@mail1.vcu.edu

http://www.worksupport.com

Principal Investigator: Michael West, PhD

Public Contact: 804/828-1851; Fax: 804/828-2193

Project Number: H133G020158

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $149,998

Abstract: This three-year project develops research models to predict successful entry or reentry into

employment using telework options. The models include: (1) functional, demographic, and experiential

characteristics of participants; (2) telework options, such as telecenters, home-based work, and combinations of home- and office-based duties; (3) types of work performed, such as telephone or on-line

technical support, telemarketing, remote data entry, writing, reservations, etc.; (4) support and training

provided by the employer and public and private agencies; and (5) monetary factors such as earnings

and fringe benefits. “Success” is defined in terms of both sustained labor force involvement and

satisfaction with one’s job, earnings, benefits, and career path.
Employment Outcomes 1-31

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Illinois

Integration of Fingerprint Technology with Online Employment

Screening Software to Create a Product that is Operated by Persons

with Disabilities in Retail Outlets

Futures in Rehabilitation Management (FIRM)

206 South Sixth Street

Springfield, IL 62701-1530

mcheatham@hso.net

Principal Investigator: Michael L. Cheatham

Public Contact: 217/753-1190; Fax: 217/525-1271

Project Number: H133S020056

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $75,795

Abstract: This project combines existing technologies with advanced imaged- based biometric fingerprint capture technologies to expand business opportunities for providers of community rehabilitation

services. The goal is to identify, train, and employ individuals with disabilities as fingerprint technicians enabling them to conduct employment background investigative services. The FIRM, through its

on-line employment background screening service called VERIFY, establishes employment- background retail outlets staffed by persons with disabilities who are trained to take Automated Fingerprint

Information System quality fingerprints. Objectives include: (1) develop and test software that integrates the live-scan technology with the VERIFY product, (2) develop a job description with detailed

skill and performance outcomes, and (3) develop a training protocol for the technicians. The project

deploys ten systems in various communities to test the training protocol and adjust it to ensure successful job performance, while utilizing and further enhancing the newly developed software.
1-32 Employment Outcomes

Small Business Innovative Research (SBIR), Phase I

Iowa

Multi-user, Interactive Online Computer Game to Improve School-toWork Transition Outcomes

P.R. Lind and Company

101 East Van Buren Street

Centerville, IA 52544

prlind1@aol.com

Principal Investigator: Patti Lind

Public Contact: 641/856-5573; Fax: 641/856-3101

Project Number: H133S020007

Start Date: September 15, 2002

Length: 6 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $74,800

Abstract: This project develops and designs an accessible, interactive on-line computer game to

increase knowledge and skills in microenterprise development, self- determination, and financial

literacy. The project includes: (1) a literature review on micro-enterprise, financial literacy, and work

incentives, particularly as they relate to young adults and self-determination, and the educational/

sociological value of multi- user, interactive on-line games; (2) preparation of requirements documentation (i.e., content, goals, and accessibility specifications) for an entertaining and educational game

design; (3) preparation of design documentation translating the requirements into a schematic; (4)

development of sample introductory and content screens; (5) content and design evaluation through

focus groups to assess usability, knowledge gain, real life applicability, and value to young adults with

disabilities; and (6) modification, if needed, of requirements and design documentation, and determination of need for accompanying training materials.
Employment Outcomes 1-33

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Florida

Virtual Interview Exercises for Workplace Success (VIEWS)

Vcom3D, Inc.

3452 Lake Lynda Drive, Suite 260

Orlando, FL 32817

dannyr@vcom3d.com

http://www.vcom3d.com

Principal Investigator: Daniel Roush

Public Contact: 407/737-7310, ext. 115; Fax: 407/737-6821

Project Number: ED-01-Q-0003 (3-7)

Start Date: September 1, 2002

Length: 24 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 02 $150,000

Abstract: This project conducts research to develop a prototype computer software program that

provides the opportunity for job seekers who are deaf or hard-of-hearing to practice employment

interviewing skills. This software incorporates SigningAvatarTM technology that uses 3D animated

characters who sign in variants of American Sign Language. The software presents an accessible

virtual interview scenario with interacting characters and the ability to respond to interview questions

that are asked frequently. If the user selects a certain number of the best responses to the interview

questions, the employer offers the interviewee the job. This software not only provides the opportunity

to practice interviewing skills independently, it may boost the confidence and intrinsic motivation of

the user.
1-34 Employment Outcomes

Small Business Innovative Research (SBIR), Phase II

Wisconsin

Fair and Appropriate Community Employment (FACE): A

Management Information System (MIS) for Evaluating the Impact of

Employment Programs on Persons with Disabilities

Research Solutions International

N4807 449th Street

Menomonie, WI 54751

chuck.coker@rsioffices.com

http://www.rsioffices.com

Principal Investigator: Charles C. Coker, PhD

Public Contact: 715/235-7531; Fax: 715/235-0482

Project Number: SBIR 01-09

Start Date: September 17, 2001

Length: 24 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 01 $149,968; FY 02 $149,968

Abstract: This project develops and beta tests a comprehensive management information system

(MIS) at 15 community rehabilitation programs (CRPs) around the nation to fill the need for an MIS

that can evaluate the relationship between services provided and outcomes achieved for consumers

with various disabilities and backgrounds. While several research efforts have employed rigorous

research designs for relating services to outcomes, the retrieval of data from the records of more than

7,000 CRPs who serve nearly 4 million persons with disabilities has met with much less success. In the

past five years, the concept Fair and Appropriate Community Employment (FACE(c)) MIS has been

developed to evaluate the effectiveness and efficiency of their service interventions upon employment

outcomes. This MIS places powerful research and analytic tools directly into the hands of practitioners

for improving outcomes for their consumers. The FACE(c) MIS software prototype was developed

with three modules: Client Tracking/Case Management, Program Evaluation using managed care

techniques, and follow- up based on FACE Profiling(c).
Health and Function

NIDRR’s research focus for health and function addresses problems in individual

care, services, and supports for people with disabilities. Research topics include:

medical rehabilitation; health and wellness programs; service delivery; short and longterm interventions; systems research; and new and emerging disabilities.

Contents

Rehabilitation Research and Training Centers (RRTCs) ...................................................................... 3

Disability and Rehabilitation Research Projects ................................................................................ 14

Model Burn Injury Systems................................................................................................................ 23

Model Spinal Cord Injury Systems .................................................................................................... 28

Model Traumatic Brain Injury Systems ............................................................................................. 44

Field-Initiated Projects (FIPs) ............................................................................................................ 61

Small Business Innovative Research (SBIR), Phase I...................................................................... 101

Health and Function 2-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Alabama

Rehabilitation Research and Training Center on Secondary Conditions

of Spinal Cord Injury: Promoting General Health, Well-Being, and

Community Integration Through Home-Based, Self-Directed Care

University of Alabama/Birmingham

Department of Physical Medicine and Rehabilitation

619 - 19th Street South, SRC 529

Birmingham, AL 35249-7330

rtc@sun.rehabm.uab.edu

http://main.uab.edu/show.asp?durki=8762

Principal Investigator: Amie B. Jackson, MD, 205/934-3334 (V); 205/934-3330 (V); 205/934-

4642 (TTY)

Public Contact: Linda Lindsey, Assistant Director, Research Services, 205/934-3283; Fax: 205/

975-4691

Project Number: H133B980016

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 98 $799,993; FY 99 $799,998; FY 00 $799,998; FY 01 $799,998; FY 02

$799,996

Abstract: This RRTC conducts coordinated, integrated, and advanced research in the prevention

and treatment of secondary conditions of SCI. The eight interrelated projects include: (1) determine

the effectiveness of cranberry pills to prevent and treat urinary tract infections (UTIs); (2) evaluate

interventions used to prevent and treat UTIs in people with SCI using the University of Alabama/

Birmingham SCI Urologic Database; (3) study the relationship of beverage consumption and water

hardness to the risk of urinary tract stones; (4) address pain following SCI by evaluating SCI pain

classification systems, studying the effectiveness of gabapentine and methadone in relieving certain

types of pain, and developing a method to target those at risk; (5) determine the duration of immune

response to pneumococcal vaccine and the need for revaccination; (6) evaluate a screening tool to

identify people with SCI at high risk for sleep apnea, and evaluate treatments to improve their health

and quality of life; (7) study the use of telemedicine to reduce depression and secondary conditions

among people with SCI and their caregivers through problem solving interventions; and (8) evaluate

and adapt a nationally recognized weight-loss project for a population of people with SCI. A collaborative project with another Center evaluates a computer-based risk assessment and feedback tool

for assessing secondary conditions. This RRTC provides training on research methodology and

information based on research activities to people with disabilities, their families, service providers,

and rehabilitation professionals. Information is disseminated through print media (information

sheets and newsletters), electronically (through the Internet and a fax information service), and

through technical assistance.
2-4 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center in Neuromuscular

Diseases

University of California/Davis

MED: Physical Medicine and Rehabilitation

TB 191

Davis, CA 95616-8655

nmdinfo@ucdavis.edu

http://www.rehabinfo.net

Principal Investigator: Craig McDonald, MD

Public Contact: Kathryn Devereaux, PhD, Training and Information Services Director, 530/752-

2903 (V); Fax: 530/752-3468

Project Number: H133B980008

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $650,000; FY 99 $650,000; FY 00 $650,000; FY 01 $650,000; FY 02

$650,000

Abstract: This project conducts research designed to enhance the quality of life of people with

neuromuscular diseases. Through multidisciplinary research and a comprehensive program of

training and information services, the Center serves consumers, physicians, and health care workers.

Program areas include: interventions to preserve functional capacity including management of

weakness and respiratory insufficiency due to muscle wasting, exercise interventions, treatment of

exercise related fatigue, pain interventions, and dietary interventions; interventions to enhance

community integration, including incorporating goal-based approaches to community integration,

facilitation of healthy adaptation through development of stress management and coping skills, and

resource training for acquisition of disability-related information through the Internet; ethical issues

related to genetic testing; and training and information services.
Health and Function 2-5

Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center on Aging with a

Disability

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, 800 West Annex

Downey, CA 90242-4155

gracefg@agingwithdisability.org

http://www.agingwithdisability.org

Principal Investigator: Bryan J. Kemp, PhD

Public Contact: Grace Farwell Granger, Associate Training Director, 562/401-7402; Fax: 562/401-

7011

Project Number: H133B980024

Start Date: September 1, 1998

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000; FY 02

$700,000

Abstract: This project assists people who are aging with a disability by conducting a series of

research studies using a database of more than 1,000 people who represent a variety of disabilities

(for example, cerebral palsy, rheumatoid arthritis, stroke, SCI, polio). Research projects include: (1)

the natural course of aging with a disability, (2) assisting family caregivers of people aging with a

disability, (3) improving community integration and adjustment, (4) preventing secondary complications such as diabetes and thyroid disorders, (5) improving bone density through a regimen of

exercise and vitamins, and (6) understanding the role of AT and environmental interventions (EI) in

maintaining functional performance. Training, dissemination, and technical assistance activities

focus on students and professionals in the health, allied health, and rehabilitation fields, as well as

people aging with a disability and their families. Goals include training rehabilitation researchers

knowledgeable about aging with a disability, improving the adoption and utilization of RRTCdeveloped assessment and treatment regimens by health and rehabilitation professionals, and disseminating information about aging with a disability to people with disabilities and their families.

Training and dissemination occurs through advanced and continuing education courses; local,

national, and international conferences; workshops; publications in professional- and consumeroriented journals; and the Internet.
2-6 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Managed Health Care for Individuals with Disabilities

MedStar Research Institute

NRH Center for Health and Disability Research

1016 - 16th Street Northwest, Suite 400

Washington, DC 20036

gerben.dejong@medstar.net

http://www.ilru.org/mgdcare/index.html

Principal Investigator: Gerben DeJong, PhD, 202/466-1905

Public Contact: Olga Elizabeth Hayes, 202/466-1919; Fax: 202/466-1911

Project Number: H133B70003

Start Date: May 1, 1997

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 97 $499,969; FY 98 $499,988; FY 99 $500,000; FY 00 $700,000; FY 01

$300,000; FY 02 (No-cost extension through 5/30/03)

Abstract: This project provides national leadership on the major health service and health policy

issues facing consumers with disabilities in managed health care arrangements. It: (1) conducts

research; (2) prepares special policy analyses; (3) hosts forums for discussion; (4) presents expert

testimony to Congress and governmental agencies; (5) publishes in the health policy, consumer, and

trade literature; (6) trains graduate students with disabilities in health service research; and (7)

disseminates findings to diverse consumer, provider, payer, academic, and policy-making audiences.

On the state and national levels the project seeks to make managed care and the larger health care

system more responsive to the needs of people with disabilities by acting as a catalyst for the development of new ideas. Program partners are the NRH Center for Health and Disability Research in

Washington DC and the Independent Living Research Utilization (ILRU) center in Houston Texas.
Health and Function 2-7

Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

The Consortium for Children and Youth with Disabilities and Special

Health Care Needs.

Georgetown University

Child Development Center

3307 M Street Northwest, Suite 401

Washington, DC 20007

nttrc@georgetown.edu

http://www.consortiumnrrtc.org

Principal Investigator: Phyllis Magrab, PhD; Larke Huang, PhD

Public Contact: Tammy Abdou, Program Coordinator, 202/687-8617 (V); 202/687-5503 (TTY);

Fax: 202/687-8899

Project Number: H133B001200

Start Date: July 1, 2000

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 00 $699,956; FY 01 $699,947; FY 02 $699,926

Abstract: The Consortium improves rehabilitation outcomes for children and youth with disabilities

and special health care needs by increasing the effectiveness of service systems. Using an integrated,

multifaceted research program, and related training, dissemination, and technical assistance activities, the program targets five areas: (1) access issues in pediatric rehabilitation, (2) impact of cost

control strategies on provision of health care, (3) promising practices in transition from pediatric to

adult health care, (4) effective telehealth strategies for interdisciplinary service delivery in remote

areas, and (5) training issues in AT. In addition, a variety of strategies utilize this information and

other knowledge to provide training and technical assistance to the target audiences of families,

consumers, providers, researchers, policy-makers, and managed care organizations to improve

rehabilitative services to this population in order to enhance their quality of life and that of their

families. The RRTC is run by the Georgetown University Center for Child and Human Development

in collaboration with Brandeis University’s Heller School, the University of Florida’s Institute of

Child Health Policy, and Family Voices.
2-8 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Access to Rehabilitation and Empowerment Opportunities for

Minority Persons with Disabilities

Howard University

2900 Van Ness Street Northwest

Holy Cross, Room 100

Washington, DC 20008

swalker@howard.edu

http://www.law.howard.edu/HURTC/HURTC.html

Principal Investigator: Sylvia Walker, EdD

Public Contact: 202/806-8086; Fax: 202/806-8148

Project Number: H133B000903

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $600,000; FY 01 $600,000; FY 02 $600,000

Abstract: The Howard University Research and Training Center for Access to Rehabilitation and

Empowerment Opportunity (HURTC) is implementing a RRTC on Access to Rehabilitation and

Empowerment Opportunities for Minority Persons with Disabilities to help them achieve selfdetermination, economic independence, and full participation in American life. The program of the

Center is designed to attain the following objectives: identify methodological problems determining

the rehabilitation needs of persons with disabilities from minority backgrounds (including subpopulations within these groups) and propose strategies to address these methodological problems;

based on research findings, identify implications for rehabilitation research, training, policy development, and services; assess the outcomes of rehabilitation for persons with disabilities from minority backgrounds as measured by two or more variables (such as functional abilities, wellness, employment, health/wellness, and psychosocial status); analyze the affects of minority status on

rehabilitation outcomes; and identify, develop, and evaluate rehabilitation methodologies, models,

and interventions for specific minority groups. The HURTC collaborates with the Center for Disease

Control, the Center for Minority Health, and a variety of stakeholders including consumers with

disabilities, state agencies, continuing education programs, and community-based organizations.
Health and Function 2-9

Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Stroke Rehabilitation

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611

http://www.rrtc-stroke.org/

Principal Investigator: Elliot J. Roth, MD, 312/238-4637

Public Contact: Linda Lovell, Project Coordinator, 312/238-6197; Fax: 312/238-6998

Project Number: H133B980021

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000; FY 01 $800,000; FY 02

$800,000

Abstract: This project tests the effectiveness of several stroke rehabilitation strategies and tactics,

trains stroke survivors and professionals, and disseminates knowledge relevant to stroke care. In

order to extend the knowledge base of stroke rehabilitation, produce changes in clinical practice, and

enhance the quality of life of stroke survivors and their families, the Center: (1) identifies, develops,

and evaluates rehabilitation techniques in order to address coexisting and secondary conditions and

improve outcomes for all stroke patients; (2) develops and evaluates standard aerobic exercise

protocols; (3) identifies and evaluates methods to identify and treat depression and other psychological problems associated with stroke; (4) determines the effectiveness of stroke prevention education

provided in a medical rehabilitation setting; (5) evaluates the impact of changes in diagnosis and

medical treatment of stroke on rehabilitation needs; (6) evaluates long-range outcomes for stroke

rehabilitation across different treatment settings; (7) evaluates the impact of stroke practice guidelines on delivery and outcomes of rehabilitation services; (8) provides training on new approaches,

innovations, and the specialized principles and practices of rehabilitation care of individuals with

stoke; (9) provides applied research experience and training in research principles and methods; (10)

disseminates information of new developments in the area of stroke care and research to people with

stroke and their families, rehabilitation professionals, and service providers; and (11) conducts a

state-of-the-science conference. The Center has a large database of information regarding stroke

rehabilitation patients and continues ongoing systems and activities to collect and analyze data

concerning stroke impairment, disability, and social functioning. This project participates in the

NIDRR Scholars program, providing motivated undergraduates with internship experience in disability research.
2-10 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

Missouri

Missouri Arthritis Rehabilitation Research and Training Center

(MARRTC)

University of Missouri/Columbia

Department of Physical Medicine and Rehabilitation

DC330.00

One Hospital Drive

Columbia, MO 65212

bakerv@health.missouri.edu

http://www.muhealth.org/~arthritis

Principal Investigator: Jerry C. Parker, PhD, 573/884-1499

Public Contact: Valerie Baker, 573/884-1499; Fax: 573/884-3020

Project Number: H133B980022

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000; FY 01 $800,000; FY 02

$800,000

Abstract: MARRTC helps to prevent and manage disability in people with arthritis and related

musculoskeletal disease by providing leadership at the national level through three strategies: (1)

MARRTC conducts state-of-the-art rehabilitation and health services research that addresses the

needs of people with arthritis and related musculoskeletal diseases in the following areas: exercise

and fitness, interventions for psychological well-being and pain, job accommodations and employment, and health and wellness using participatory action research (PAR) strategies to emphasize the

inclusion of consumers in all phases of the research process; (2) MARRTC provides training for

physicians and other health care professionals in the rehabilitative aspects of rheumatologic practice,

including university-based programs, national presentations, research capacity-building, and publications aimed at improving clinical skills; and (3) MARRTC disseminates rehabilitation research

and technology transfer for the empowerment of people with arthritis to help them to minimize

disability, maintain employment, and improve functional status.
Health and Function 2-11

Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center: Health and Wellness

Consortium

Oregon Health and Science University

Oregon Institute on Disability and Development

Child Development and Rehabilitation Center

707 Southwest Gaines

P.O. Box 574

Portland, OR 97207-0574

minnichl@ohsu.edu

http://www.healthwellness.org

Principal Investigator: Gloria Krahn, PhD, 503/494-8364

Public Contact: Carla Culley, Project Coordinator, 503/494-9557; Fax: 503/494-6868

Project Number: H133B990019

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $700,000; FY 00 $700,000; FY 01 $700,000; FY 02 $700,000

Abstract: The Center has a comprehensive program of research, training, technical assistance, and

dissemination with primary attention given to the physical and mental aspects of health for people

with long-lasting disabilities such as cerebral palsy, SCI, multiple sclerosis, amputation, and postpolio. Interconnected research areas include evaluating health assessment definitions, practices,

policies, and measurement, and their impact on health promotion and investigating the relationship

between selected health maintenance strategies and the incidence and severity of secondary conditions and other functional outcomes. Center projects examine the practices of exemplary generic and

specialized health promotion programs; analyze the health behaviors and related functional outcomes of individuals with disabilities; examine the relationship between health definitions, practices,

and secondary conditions to develop a screening tool for health and wellness for people with disabilities; and investigate the association between disability and differential detection of cancer. The

Center’s third area of focus centers on identifying and evaluating best practices in health promotion.

These include an Internet-delivered reproductive health promotion package, strategies for enhancing

the participation of individuals with disabilities in self-directed physical activity, the accessibility of

alcohol and drug treatment programs to people with disabilities, and methods for culturally responsive health promotion. An additional research focus is the use and efficacy of complimentary alternative medicine among people with these specific long-term disabilities.
2-12 Health and Function

Rehabilitation Research and Training Centers (RRTCs)

Texas

Rehabilitation Research and Training Center on Rehabilitation

Interventions Following Traumatic Brain Injury

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

1333 Moursund Avenue

Houston, TX 77030-3498

whigh@bcm.tmc.edu

http://www.braininjuryresearch.org

Principal Investigator: Walter M. High Jr., PhD

Public Contact: 713/666-9550; Fax: 713/668-5210

Project Number: H133B990014

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 99 $650,000; FY 00 $650,000; FY 01 $650,000; FY 02 $650,000

Abstract: The Center promotes the scientific advancement of rehabilitation research by focusing on

several areas identified as needing further research. These include areas of weakness in the current

knowledge and future research regarding TBI recovery and rehabilitation effectiveness: improvement of the diagnosis and treatment of persons with mild TBI; development of interventions to assist

school-age children with TBI; the needs of minority groups members with TBI; evaluation of the

effectiveness of rehabilitation interventions; and treatment for the family members of people with

TBI. Activities include publishing an informational and technical assistance resource for consumers

and professionals; training for medical and neuropsychological fellows in rehabilitation research;

coordinating a state-of-the-science conference on mild TBI; and producing an educational videotape

to train family members in effective coping skills. Through representation on the advisory committees, consumers are involved in all aspects of planning and evaluating research and training activities.
Health and Function 2-13

Rehabilitation Research and Training Centers (RRTCs)

Washington

Multiple Sclerosis Rehabilitation Research and Training Center

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98195-6490

msrtc@u.washington.edu

http://www.msrrtc.washington.edu

Principal Investigator: George H. Kraft, MD, 206/543-7272

Public Contact: Carolyne Dollar, 206/221-5302; Fax: 206/685-3244

Project Number: H133B980017

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 98 $691,314; FY 99 $697,978; FY 00 $697,978; FY 01 $695,684; FY 02

$696,257

Abstract: This Center promotes health and wellness of people with multiple sclerosis (MS) and

improves their functioning and employment status. Fundamental to the project is a health survey

administered to people with MS throughout the Northwest region. Information from the survey is

fed into six project components: (1) promoting wellness among people with MS through brief

counseling methods; (2) improving the functioning of people with MS through three studies: improving psychological distress using pharmacological intervention, evaluating the combined effect

of cooling and exercise on performance, and improving function through cognitive rehabilitation

interventions; (3) exploring the employment status of people with MS; (4) designing practical

interventions and workplace modifications; (5) studying the interaction between aging and MS; and

(6) exploring the effects of gender, culture, socioeconomic status, ethnicity, place of residence, and

insurance coverage on people with MS, in regard to symptomology and response to treatments.

Researchers develop and apply interventions and conduct follow-up surveys to evaluate the effectiveness of the intervention strategies. This Center collaborates with the RRTC on Substance Abuse,

the RRTC on Workplace Supports, the Consortium of MS Centers, the National MS Society, and the

MS Association of King County.
2-14 Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

Lifetime Outcomes and Needs: Refining the Understanding of Aging

with Spinal Cord Injury

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80110-2811

susie@craighospital.org

http://www.craighospital.org

Principal Investigator: Daniel P. Lammertse, MD, 303/789-8220

Public Contact: Susan Charlifue, 303/789-8306; Fax: 303/789-8441

Project Number: H133A011108

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $350,000; FY 02 $350,000

Abstract: This project explores the incidence and prevalence of several health and psychosocial

conditions that accompany living many years with SCI. Also studied in this comprehensive, longitudinal, multicenter effort are the services available to individuals with SCI as they attempt to address

these conditions throughout their lives. The study expands the longitudinal database, addressing

emerging issues of aging with SCI in greater detail, and expands efforts to share findings with a

variety of constituents. The eight areas of focus include: (1) secondary conditions from five to 25

years post-injury, (2) new analytic techniques with longitudinal datasets, (3) chronic pain, (4) access

to and satisfaction with health services, (5) personal assistance services, (6) spirituality and its

effects on health outcomes and quality of life, (7) the role of perceived stress and self-reported

problems on the presence or absence of secondary conditions and in relation to one’s overall wellbeing, and (8) trends in quality of life and health. This longitudinal study builds on two previous

data collection points. It includes a broad, comprehensive examination of secondary conditions, both

physical and psychosocial, and several new areas of inquiry investigated in-depth.
Health and Function 2-15

Disability and Rehabilitation Research Projects

Florida

Pharmacological Management of Dyslipidemia and Cardiovascular

Disease in Persons with Chronic Cervical SCI: A Multicenter

Collaborative Trial

University of Miami

School of Medicine

1095 Northwest 14th Terrace, R48

Miami, FL 33136

msnash@miami.edu

http://www.miamiproject.miami.edu

Principal Investigator: Mark S. Nash, PhD, 305/243-3628

Public Contact: Maria Amadore, Directory of Education, Miami Project to Cure Paralysis, 305/

243-7108

Project Number: H133A011115

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $344,023; FY 02 $340,953

Abstract: This project researches strategies that reduce cardiovascular disease risks after onset of

tetraplegia by increasing high-density lipoprotein cholesterol (HDL-C) levels. The research examines the ability of a pharmaceutical therapy to improve the lipid profiles and forestall cardiovascular

disease progression in persons with tetraplegia. Previous research on persons without SCI has shown

extended-release niacin effective for elevating HDL-C, lowering total cholesterol, lowering lowdensity lipoprotein cholesterol (LDL-C), lowering triglycerides, slowing cardiovascular disease

progression, and reducing cardiovascular morbidity and mortality. The ability of this drug to improve lipid profiles has never been examined in persons with tetraplegia, although drug benefits

similar to those reported in persons without SCI would be of great health benefit to those with

tetraplegia.
2-16 Health and Function

Disability and Rehabilitation Research Projects

Massachusetts

Access to Health Care Services for Persons with Disabilities: Defining

the Barriers and Strategies for Change

Health and Disability Working Group

Boston University

School of Public Health

374 Congress Street, Suite 502

Boston, MA 02210

drainoni@bu.edu

http://www.hdwg.org

Principal Investigator: Mari-Lynn Drainoni, PhD

Public Contact: 617/426-4447; Fax: 617/426-4547

Project Number: H133A990014

Start Date: October 1, 1999

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $245,434; FY 00 $245,434; FY 01 $246,676; FY 02 $250,000

Abstract: This project examines a wide range of access barriers to the continuum of health care

services for people with disabilities across the life span in Massachusetts. Project objectives include:

(1) to examine variation in access to health care services by provider type; (2) to examine different

types of access important for people with disabilities: physical access, communication access,

cognitive access, and medical access; (3) to identify changes made since the passage of the ADA;

(4) to identify barriers to health care services as experienced by individuals with disabilities and

compare this experience with provider perceptions; (5) to identify best practices that mitigate access

barriers; (6) to develop a research agenda for future activities in this area; and (7) to develop dissemination products that advance both knowledge and practice among purchasers, regulators, health

plans, providers, and people with disabilities. The project examines the accessibility of a range of

health care providers, including outpatient clinics, hospital outpatient departments, mental health

and substance abuse treatment providers, dentistsa:’ offices, hospitals, rehabilitation facilities, acute

detoxification facilities, and assisted living facilities.
Health and Function 2-17

Disability and Rehabilitation Research Projects

Massachusetts

The Spauldings/Partners TBI Model System at Harvard Medical

School

Spaulding Rehabilitation Hospital

125 Nashua Street

Boston, MA 02114

toneilpi@lynx.dac.neu.edu

http://spauldingrehab.org/home/ed_research/index.htm

Principal Investigator: Mel B. Glenn, MD, 617/573-2625

Public Contact: Therese O’Neil-Pirozzi, ScD, 617/573-2456; Fax: 617/573-2469

Project Number: H133A020513

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $365,000

Abstract: The Spaulding TBI Model Systems (TBIMS) provides a comprehensive spectrum of care

for people with TBI through the collaborative efforts of three hospitals that are part of Partners

Health Care System, Inc. and four organizations that operate a variety of postacute rehabilitation

programs. Research at the center includes development of functional neuroimaging as a tool to guide

cognitive rehabilitation treatment for people with TBI, and use of functional magnetic resonance

imaging (fMRI), with both a cross-sectional and longitudinal component. The cross-sectional component assesses regional brain activation during the memorization of word lists, both under undirected (spontaneous) conditions and following training and cueing to use a categorization strategy.

The longitudinal component studies the ability of the fMRI findings to predict outcome among

people with TBI who participate in community integration program with a cognitive rehabilitation

focus.
2-18 Health and Function

Disability and Rehabilitation Research Projects

Mississippi

Collaborative Study of Impaired Self-Awareness After Traumatic

Brain Injury

Methodist Rehabilitation Center

Brain Injury Program

1350 East Woodrow Wilson Center

Jackson, MS 39216

marks@mmrcrehab.org

http://www.mmrcrehab.org

Principal Investigator: Mark Sherer, PhD

Public Contact: 601/364-3448; Fax: 601/364-3452

Project Number: H133A980067

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 98 $140,108; FY 99 $140,108; FY 00 $140,108; FY 01 $140,108; FY 02

(No-cost extension through 3/30/2003)

Abstract: This project creates new knowledge on impaired self-awareness (ISA) in people with

moderate to severe TBI. ISA interferes with effective delivery of rehabilitation services, prevents

self-advocacy, leads to distress within the family system, and negatively affects social outcomes.

This project studies its impacts and its subjective meaning for consumers in order to design new

treatments and service delivery innovations. It conducts the first large-scale (N=160), prospective

longitudinal study of ISA’s neural substrates, neuropsychological features, natural history, and

relationship to functional and quality-of-life outcomes over the first year following moderate-tosevere TBI. With several methodological innovations that improve interpretation of the quantitative

data, project researchers provide the first systematic qualitative study of self-awareness from the

perspective of people with TBI and their families. The project uses: (1) the expertise of researchers

involved in TBI outcomes research, (2) many data elements already captured in the Model System

database and supported by Model System infrastructure, and (3) the high volume of subjects and

excellence of resources jointly available at the two collaborating sites. The project is a collaboration

between the TBI Model System of Mississippi and the TBI Model System at MossRehab in Philadelphia. Findings are disseminated to consumers, rehabilitation professionals, and the TBI Model

Systems nationwide.
Health and Function 2-19

Disability and Rehabilitation Research Projects

New Jersey

JFK-Johnson Rehabilitation Institute TBI Model System

JFK Johnson Rehabilitation Institute

2048 Oak Tree Road

Edison, NJ 08820

kcicerone@solarishs.org

Principal Investigator: Keith D. Cicerone, PhD

Public Contact: 732/906-2640; Fax: 732/906-9241

Project Number: H133A020518

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $365,000

Abstract: This project implements and evaluates innovative rehabilitation interventions that address

the spectrum of severity and needs of persons with TBI. The first research study investigates the

relationship between neurobehavioral (i.e., standardized rating scale) and neurophysiologic (i.e.,

fMRI data) indices of brain function in persons with traumatic minimally conscious state (MCS).

The second study addresses current clinical and methodological concerns over the effectiveness of

cognitive rehabilitation on cognitive functioning, community integration and social participation,

return to school and work, and quality of life after traumatic brain injury. The third study uses

qualitative inquiry to describe the quality of life after TBI from the perspective of persons at various

stages after their injuries. These findings are triangulated with quantitative indices of community

integration and satisfaction with functioning, which should provide a richer and more authentic

understanding of what it takes to live a fulfilling life after traumatic brain injury.
2-20 Health and Function

Disability and Rehabilitation Research Projects

Ohio

Ohio Regional TBI Model System

Ohio Valley Center for Brain Injury Prevention and Rehabilitation

Department of Physical Medicine and Rehabilitation

Ohio State University

Dodd Hall

480 West Ninth Avenue

Columbus, OH 43210

lamb-hart.1@osu.edu

http://www.ohiovalley.org

Principal Investigator: John D. Corrigan, PhD, 614/293-3830

Public Contact: Gary Lamb-Hart, 614/293-3802; Fax: 614/293-8886

Project Number: H133A020503

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $365,000

Abstract: This model system includes two local research projects on substance abuse and persons

with TBI. Study 1 is a randomized clinical trial testing interventions to promote retention in substance abuse treatment. This study employs intervention strategies found effective for clients with

TBI when first engaging with a treatment program. Study 2 tests the concurrent validity of an

instrument that documents the extent of a person’s prior history of TBI objectively. This instrument

is intended for research on TBI as a mediating factor in substance abuse treatment. This model

system utilizes innovative community integration programs: Team Brain Injury (follow-up case

management), the TBI Network (substance abuse treatment), and Community Capacity Building

(education and advocacy operated in conjunction with the Brain Injury Association of Ohio).
Health and Function 2-21

Disability and Rehabilitation Research Projects

Pennsylvania

Treatment of Shoulder Dysfunction in Polio Survivors and Elderly

Adults with Lower Extremity Impairment

MossRehab

Albert Einstein Healthcare Network

1200 West Tabor Avenue, Korman Suite 213

Philadelphia, PA 19141-3099

mklein@einstein.edu

Principal Investigator: Mary G. Klein, PhD

Public Contact: 215/456-7864; Fax: 215/456-5926

Project Number: H133A000101

Start Date: July 1, 2000

Length: 24 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $233,074; FY 01 $229,424; FY 02 (No-cost extension through 6/30/2003)

Abstract: This project demonstrates how a well-structured exercise program can help to alleviate

shoulder symptoms in polio survivors. Research is needed to determine the effectiveness of treatment modalities, such as exercise, on shoulder overuse disorders in polio survivors and other populations with lower extremity impairments. Previous research has determined that shoulder pain is

one of the most frequent overuse symptoms seen among post-polio survivors. Additionally, elderly

adults who have lower extremity impairments, but no history of polio, also develop overuse symptoms. This research uses a predictive model of shoulder pain that demonstrated that lower extremity

weakness and weight were associated with the presence of shoulder overuse symptoms, thus suggesting that these symptoms may arise from use of the upper extremities to compensate for lower

extremity weakness during transfers, stair climbing, and other activities. Exercise training is a

potential means of reducing the burden of both primary and secondary impairments in post-polio

and elderly populations with significant lower extremity weakness, and an effective treatment for

improving function and quality of life. Other populations with lower extremity weakness who may

benefit from this research include those with muscular sclerosis or incomplete spinal cord injuries.
2-22 Health and Function

Disability and Rehabilitation Research Projects

Pennsylvania

Collaboration of Upper Limb Pain in Spinal Cord Injury

University of Pittsburgh

7180 Highland Drive

Pittsburgh, PA 15206

cooperrm@pitt.edu

Principal Investigator: Michael L. Boninger, MD

Public Contact: Peter Hunt, 412/365-4850; Fax: 412/365-4858

Project Number: H133A011107

Start Date: December 1, 2001

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $349,998; FY 02 $349,950

Abstract: This collaborative studies project provides an opportunity to gain further insight into the

cause and prevention of upper limb repetitive strain injuries in SCI. For the approximately 200,000

individuals with SCI, upper limb pain and injury is very common; some studies find prevalence

rates above 70 percent. Prolonged wheelchair use and transfers have long been thought to cause

these repetitive strain injuries. The consequences of upper limb pain are so significant that some

researchers have suggested that damage to the upper arm may be functionally and economically

equivalent to a spinal cord injury of higher neurological level. This collaboration includes the

University of Pittsburgh Medical Center Spinal Cord Injury project, the Northern New Jersey Spinal

Cord Injury System (NNJSCIS), and the Northwest Regional Spinal Cord Injury System

(NWRSCIS).
Health and Function 2-23

Model Burn Injury Systems Model Burn Injury Systems

Colorado

UCHSC Burn Model System Data Coordination Center (BMS/DCC)

University of Colorado Health Sciences Center

School of Medicine

Department of Preventive Medicine and Biometrics

4200 East Ninth Avenue, Box B119

Denver, CO 80262

rebecca.sloan@uchsc.edu

http://mama.uchsc.edu/pub/nidrr

Principal Investigator: Dennis C. Lezotte, PhD, 303/315-6873

Public Contact: Rebecca Sloan, Database Administrator, 303/315-0320; Fax: 303/315-3183

Project Number: H133A020402

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $249,997

Abstract: The BMS/DCC establishes a data management and analytical support facility for Burn

Model Systems clinical and outcomes research projects. Objectives include: (1) to serve the clinical,

research, and public communities to which it is responsible; (2) to serve the needs of good scientific

procedure in multi-institutional outcomes research; and (3) to support the needs for patient safety

and data confidentiality as required by Federal regulations when conducting collaborative clinical

studies. The BMS Project is structured as a set of interacting, observational, randomized, and quasiexperimental clinical studies run at different centers that share the common purpose of acquiring and

disseminating knowledge about burn injury care and rehabilitation. The project offers support in

four important areas: project management, data management, analytical support, and dissemination.

Support is provided in developing appropriate integrated systems to affect national data collection,

project management, data coordination, technical support, collaborative clinical projects, scientific

conduct, scientific publication, and effective dissemination. The UCHSC BMS/DCC continues to

accumulate and integrate a central repository of data from the Model Systems to enhance their

abilities to make sentinel statements and change the way burn injury rehabilitation is done. While

the main function of the DCC is to integrate and manage these data, it also needs to be responsive to

the technical and analytical needs of these individual clinical centers. In addition the DCC provides

and coordinates statistical support among the clinical and statistical groups from each Burn Center

and is prepared to expand this support, adding several new protocols and/or clinical studies where

appropriate.
2-24 Health and Function

Model Burn Injury Systems

Maryland

Johns Hopkins University Burn Injury Rehabilitation Model System

(JHU-BIRMS)

Baltimore Regional Burn Center

Johns Hopkins Bayview Medical Center

4940 Eastern Avenue

Baltimore, MD 21224

jfauerba@jhmi.edu

http://www.jhbmc.jhu.edu/brbc/birms

Principal Investigator: James A. Fauerbach, PhD, 410/550-0894

Public Contact: Bernadette Guthrie, 410/550-5298; Fax: 410/550-8161

Project Number: H133A020101

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $298,928

Abstract: This project tests interventions targeting three common postburn secondary complications

affecting health and function: generalized deconditioning, muscle atrophy, and acute stress disorder.

Testing the effectiveness of these interventions holds promise for improving the health and function

of burn survivors as well as enhancing their options for workplace and community reintegration.

The JHU-BIRMS includes several projects: (1) testing the efficacy of its augmented exercise program in rehabilitating people with generalized deconditioning, (2) testing the efficacy of enhanced

cognitive-behavioral therapy in treating individuals with acute stress disorder and preventing the

development of chronic posttraumatic stress disorder, (3) developing a new measure that quantifies

the degree of social stigmatization experienced by burn survivors and its impact on emotional

adjustment and integration into the workplace and the community (this project involves the Phoenix

Society, the largest foundation supporting burn survivors and their significant others), (4) a collaborative effort with the University of Washington on a workplace integration study identifying and

quantifying those factors interfering with early and complete return to work, and (5) a collaborative

study on health and function with the University of Texas.
Health and Function 2-25

Model Burn Injury Systems

Texas

North Texas Burn Rehabilitation Model System (NTBRMS)

The University of Texas Southwestern Medical Center

Department of Physical Medicine and Rehabilitation

5323 Harry Hines Boulevard

Dallas, TX 75390-9136

radha.holavanahalli@utsouthwestern.edu

http://www.swmed.edu/ntbrms/welcome.htm

Principal Investigator: Karen Kowalske, 214/648-2288

Public Contact: Radha Holavanahalli, PhD, 214/648-9540; 214/648-3654; Fax: 214/648-2005

Project Number: H133A020104

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000

Abstract: This project conducts five research projects, two collaborative and three site-specific: (1)

barriers to return-to-work following major burn injury; (2) long-term outcome following major burn

injury; (3) outcome following deep, full-thickness hand burns; (4) the evolution over time of burnassociated neuropathy; and (5) the socioeconomic determinants of disability in individuals with burn

injury. The North Texas Burn Rehabilitation Model System (NTBRMS) is a collaboration of

Parkland Health and Hospital System (PHHS) and the University of Texas, Southwestern Medical

Center (UTSW). Collaboration occurs on many levels at the NTBRMS. Clinical collaboration is the

hallmark of the burn team, which includes individuals from several institutions who work together

seamlessly, as well as collaboration with rural care providers through rural clinics and a biannual

seminar. Research collaboration occurs locally with the surgeons and academic computing staff, and

nationally with the other model systems.
2-26 Health and Function

Model Burn Injury Systems

Texas

Pediatric Burn Injury Rehabilitation Model System

University of Texas Medical Branch

815 Market Street, Route 1220

Galveston, TX 77550

dherndon@utmb.edu

Principal Investigator: David Herndon, MD, 409/770-6731

Public Contact: Pat Blakeney, PhD, 409/770-6718; Fax: 409/770-6919

Project Number: H133A020102

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000

Abstract: This program conducts independent and multi-center projects focusing on evaluating and

improving the rehabilitation provided to the burned child, striving to decrease disability and improve

reintegration into society. The project continues longitudinal assessments of patients, expanding the

database that includes measures of cardiopulmonary function, physical growth and maturation, bone

density, range of motion, activities of daily living, scar formation, reconstructive needs, and measures of psychosocial adjustment. This data is used to identify areas that require improvement and

provide functional outcome measures that can be used in the evaluation of treatment methods.

Research activities include: (1) a multi-center project assessing the efficacy of the long-term administration of oxandrolone in the treatment of burn injury with endpoints of improved strength, lean

body mass, bone density, and growth; (2) improving rehabilitative outcomes for children by instituting and evaluating major modifications to current treatment for children with large burns; (3) evaluating the use of pressure garments in controlling scar following burn injury; (4) a multi-center study

evaluating the relationship between treatment, injury, patient characteristics, and patient outcome in

those patients sustaining full thickness hand burns; and (5) evaluating acute stress disorder and

posttraumatic stress disorder, including its occurrence, predictive elements, and efficacy of treatment.
Health and Function 2-27

Model Burn Injury Systems

Washington

University of Washington Burn Injury Rehabilitation Model System

University of Washington

Department of Surgery, Division of Plastic Surgery

Harborview Medical Center

325 Ninth Avenue

Box 359796

Seattle, WA 98104

palacpac@u.washington.edu

http://faculty.washington.edu/engrav/index.html

Principal Investigator: Loren H. Engrav, MD, 206/731-3209

Public Contact: Dolores Palacpac, 206/731-2866; Fax: 206/731-3656

Project Number: H133A020103

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000

Abstract: This model system conducts five research projects: (1) A New Approach to the Etiology

of Hypertrophic Scarring: develops an increased understanding of hypertrophic scarring. (2) Effect

of Virtual Reality on Active Range-of-Motion During Physical Therapy: uses distraction via

immersive virtual reality as an adjunctive non-pharmacologic analgesic. This study tests the hypothesis that virtual reality allows patients to tolerate greater stretching during physical therapy compared to no distraction, and that in spite of achieving greater range-of-motion, patients still experience lower pain levels while in virtual reality. (3) Determination of Reasons for Distress in

Burn-Injured Adults: identifies reasons behind a burn survivor’s distress at various time-points after

hospital discharge. (4) Barriers for Return to Work: identifies specific barriers to return to work for

burn survivors. (5) Acute Stress Disorder Among Burn Survivors: evaluates the effectiveness of

cognitive-behavioral therapy, relative to a non-directive, supportive therapy control group, and a

national comparison sample in reducing the prevalence of post-traumatic stress disorder diagnosis

and symptom severity. Projects 4 and 5 are collaborative. In addition this project participates in the

national database.
2-28 Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Alabama

UAB Model Spinal Cord Injury Care System

University of Alabama/Birmingham

Spain Rehabilitation Center

619-19th Street South SRC 529

Birmingham, AL 35249-7330

lindsey@uab.edu

http://main.uab.edu/show.asp?durki=10712

Principal Investigator: Amie B. Jackson, MD, 205/934-3330

Public Contact: Linda Lindsey, Assistant Director Research Services, 205/934-3283 (V); 205/934-

4642 (TTY); Fax: 205/975-4691

Project Number: H133N000016

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $340,000; FY 01 $340,000; FY 02 $340,000

Abstract: The purpose of the University of Alabama at Birmingham (UAB) Spinal Cord Injury

Care System (UAB-SCICS) program is to provide cutting edge, cost effective, comprehensive care

from the moment of injury across the life span for persons who incur a SCI; to investigate ways of

improving aspects of that system of care through clinical research; and to disseminate project research findings to persons with SCI, their family members, and professional care providers. UABSCICS includes two research projects: (1) investigating musculoskeletal/spine changes in postmenopausal women with SCI; and (2) completing a longitudinal investigation of the processes

involved in coming to terms with disability over the first year post-injury. UAB-SCICS maintains

linkages with emergency medical service agencies throughout the state, with state and local VR and

long-term follow-up programs, with clinically oriented research activities within the UAB-SCICS

itself; with UAB’s companion Medical RRTC on Secondary Conditions of SCI, as well as with

clinical research programs being conducted at other Model SCI Systems. The UAB-SCICS currently

maintains the National Spinal Cord Injury Statistical Center.
Health and Function 2-29

Model Spinal Cord Injury Systems

California

Regional Spinal Cord Injury Care System of Southern California

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, HB117

Downey, CA 90242-4155

rwaters@dhs.co.la.ca.us

Principal Investigator: Robert L. Waters, MD, 562/401-7048

Public Contact: 562/401-7161; Fax: 562/803-5623

Project Number: H133N000029

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $345,000; FY 01 $345,000; FY 02 $345,000

Abstract: The Regional Spinal Cord Injury Care System of Southern California’s primary mission

is to collect initial and follow-up data on persons who have sustained spinal cord injuries and submit

it to the national statistics database at the University of Alabama at Birmingham. Another component of the project focuses on literacy in individuals with SCI. Also, the project identifies, evaluates,

and eliminates environmental barriers, particularly cultural and social barriers, to enable people with

SCI to reintegrate fully into their community, and thus improve their lives. The project has been

designed to meet the needs of the approximately 75 percent minority and underserved populations

that comprise its clientele, and has samples sufficient for achieving adequate statistical power in the

relevant designs and producing meaningful research. Finally, the System contributes new and useful

information to the current collection of SCI literature. This project contributes to the national statistics database at the University of Alabama at Birmingham.
2-30 Health and Function

Model Spinal Cord Injury Systems

California

Model Spinal Cord Injury System

Santa Clara Valley Medical Center (SCVMC)

Medical Staff Corporation

950 South Bascom Avenue, Suite 2011

San Jose, CA 95128

tbisci@tbi-sci.org

http://www.tbi-sci.org

Principal Investigator: Tamara Bushnik, PhD, 408/295-9896

Public Contact: Fax: 408/295-9913

Project Number: H133N000007

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $340,000; FY 01 $340,000; FY 02 $340,000

Abstract: The system of care at the Santa Clara Valley Medical Center (SCVMC) that extends from

the scene of the accident to community reintegration has been developed through a program encompassing services, teaching and demonstration, and clinical research activities in its northern and

central California and Nevada catchment area. This effort continues to include community agency

staff and consumers and has produced a network of services addressing the needs of individuals with

SCI. Based on input from consumers and their family members, community organizations, rehabilitation health professionals, and the rehabilitation literature, the research program studies: (1) the

efficacy of peer support, both group and one-on-one mentoring, to improve quality of life, physical

and psychosocial status, and community participation and integration; (2) if a regular exercise

program can improve the above mentioned community outcomes; (3) the effect of high personal

attendant turnover on the above mentioned variables and whether an intervention can decrease that

turnover and improve outcomes; and (4) the provision of SCI-specific education and whether improving knowledge improves outcomes. This project contributes to the national statistics database at

the University of Alabama at Birmingham.
Health and Function 2-31

Model Spinal Cord Injury Systems

Colorado

The Rocky Mountain Regional Spinal Injury System

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80110-2811

susie@craighospital.org

http://www.craighospital.org

Principal Investigator: Daniel P. Lammertse, MD, 303/789-8220

Public Contact: Scott Manley, EdD, 303/789-8214 (V); 303/789-8575 (TTY); Fax: 303/789-8219

Project Number: H133N000001

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $375,000; FY 01 $375,000; FY 02 $375,000

Abstract: The Rocky Mountain Regional Spinal Injury System (RMRSIS) emphasizes research and

significant contributions that have been made in the areas of SCI costs of care, aging, outcome

assessment, high tetraplegia, neurorehabilitative surgery, and program evaluation, as well as participation in randomized controlled multicenter clinical trials. An integrated research agenda includes a

controlled clinical trial of therapy for shoulder pain and evaluations of longitudinal outcomes of

surgery for spinal cord myelopathies, recovery from pressure sore surgery, perimenopausal symptoms and treatments in women with SCI, the issues of women who provide assistance to a partner

with SCI, and the impact of environmental barriers on the full participation in of people with SCI.

The project includes two highly regarded Level I trauma centers with specialized acute neurotrauma

care facilities (St. Anthony Hospital and Swedish Medical Center) and the rehabilitation and lifetime

follow-up services of Craig Hospital. These facilities bring together a full complement of disciplines

and specialists, medically directed by six full-time physicians specializing in SCI acute and rehabilitation management, to provide all components of a Model System of care. This project contributes

to the national statistics database at the University of Alabama at Birmingham.
2-32 Health and Function

Model Spinal Cord Injury Systems

Florida

South Florida Regional Spinal Cord Injury Model System

University of Miami

School of Medicine

1095 Northwest 14th Terrace

Miami, FL 33136

m.sipski@miami.edu

http://www.miamiproject.miami.edu

Principal Investigator: Marca L. Sipski, MD, 305/243-8187

Public Contact: Shondra Young, 305/243-4739; Fax: 305/243-3395

Project Number: H133N000017

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $375,000; FY 01 $320,000; FY 02 $320,000

Abstract: The South Florida Spinal Cord Injury System (SFSCIS) is a cooperative effort between

the University of Miami School of Medicine, The Miami Project to Cure Paralysis, Jackson Memorial Hospital, and the Miami VA Medical Center. The SFSCIS is a multidisciplinary system of care

providing comprehensive rehabilitation services specifically designed to meet the special needs of

individuals with spinal cord injuries. The clinical components of the SFSCIS include emergency

medical services, acute care, vocational and other rehabilitation services, community and job placement, and long-term community follow-up and health maintenance. A comprehensive prevention

program is included in the program. A significant and substantial research program focuses on the

maintenance of health and function; three clinical trials and five major research projects are included. Each of these projects centers on studying interventions to improve outcomes in the preservation or restoration of function following SCI. In addition to these research projects, this project

contributes to the National Spinal Cord Injury Database. A program designed for widespread dissemination of research and demonstration findings is included. In addition, culturally appropriate

methods of education, training, and outreach are interwoven throughout the projects. Finally, the

program includes a comprehensive evaluation program.
Health and Function 2-33

Model Spinal Cord Injury Systems

Georgia

Georgia Regional Spinal Cord Injury Care System

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road Northwest

Atlanta, GA 30309-1465

lesley_hudson@shepherd.org

http://www.shepherd.org

Principal Investigator: David F. Apple, Jr., MD, 404/350-7353

Public Contact: Lesley M. Hudson, MA, Project Co-Director, 404/350-7591; Fax: 404/355-1826

Project Number: H133N000005

Start Date: September 30, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $374,992; FY 01 $374,992; FY 02 $374,992

Abstract: The Georgia Regional Spinal Cord Injury Care System admits approximately 200 individuals annually with acute onset paralysis secondary to spinal cord injury, and collects post-discharge data on 600 individuals each year. Its patient population comes primarily from Georgia, the

rest of the Southeast, and the Eastern Seaboard. The continuum of care begins at injury and continues through transport, assessment, acute care, rehabilitation, emotional adjustment, community

reintegration, and lifetime follow-up. The program is involved with site-specific research projects on

incomplete spinal cord injuries, enhanced long distance technological communications with patients,

and the determination of early predictors of secondary complications. As part of the clinical research

activity sponsored by the facility’s Crawford Research Institute, the program is responsible for

ongoing referrals of acutely injured individuals, as well as long-term follow-up and data collection.

This project contributes to the national Model Spinal Cord Injury System (SCIS) national database

at the University of Alabama at Birmingham.
2-34 Health and Function

Model Spinal Cord Injury Systems

Massachusetts

The New England Regional Spinal Cord Injury Center

Boston University Medical Center Hospital

Department of Rehabilitation Medicine

One Boston Medical Center Plaza, F-511

Boston, MA 02118-2393

shanker.nesathurai@bmc.org

http://www.bumc.bu.edu/Departments/HomeMain.asp?DepartmentID=91

Principal Investigator: Shanker Nesthurai, MD

Public Contact: Tricia Regan, Administrative Director of Rehabilitation Services, 617/638-7310;

Fax: 617/638-7313

Project Number: H133N000024

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $374,514; FY 01 $300,000; FY 02 $300,000

Abstract: The principal goals of the New England Regional Spinal Cord Injury Center (NERSCIC)

are to identify interventions with a high likelihood of promoting employment and reemployment and

to evaluate, systematically and scientifically, the efficacy of these strategies. The outcome is a

regional clinical and research capacity designed to meet the needs of people with SCI, their employers and prospective employers, and the needs of people who provide their care. The Model SCI

System includes ten research projects: (1) a pilot study on the effects of Internet access upon the

health and social interactions of people with SCI; (2) a study of building accessibility in eastern

Massachusetts; (3) a study of “way-finding” as confronting environment barriers and facilities; (4) a

return to work of twenty people with SCI; (5) a study of freehand; (6) secondary data analysis of the

inter-relationship among catheterization, smoking, and bladder cancer; (7) an insurance study identifying incentives and disincentives to work; (8) a study of the effects of health and fitness on secondary conditions to initiating or continuing paid employment; (9) the child care and dependent care

needs of adults with disabilities and the effects of employment upon their children and other dependents; and (10) a secondary analysis of Veterans with SCI. This project contributes to the national

statistics database at the University of Alabama at Birmingham.
Health and Function 2-35

Model Spinal Cord Injury Systems

Michigan

University of Michigan Model Spinal Cord Injury Care System

University of Michigan

Department of Physical Medicine and Rehabilitation

300 North Ingalls, Room NI2A09

Ann Arbor, MI 48109-0491

model.sci@umich.edu

http://www.med.umich.edu/pmr/model_sci

Principal Investigator: Denise G. Tate, PhD, ABPP, 734/936-7052

Public Contact: Kathy Klykylo, MHSA, Research Associate, 734/763-0971; Fax: 734/936-5492

Project Number: H133N000009

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $320,000; FY 01 $320,000; FY 02 $320,000

Abstract: The University of Michigan Model Spinal Cord Injury Care System provides comprehensive care and services to both children and adults, and is the only facility in Michigan to care for

ventilator-dependent persons of all ages with SCI. The project objectives are to: (1) provide a continuum of comprehensive, multidisciplinary services for persons with SCI, from emergency medical

services to long-term community follow-up, with a focus upon maintaining health; (2) demonstrate

the effects of the continuum of comprehensive services, focusing on its efficacy in promoting employment, health maintenance and wellness, independent living, and community reintegration; (3)

conduct significant research, using a participatory action research approach involving consumer

input from inception through implementation; (4) operate an efficient service system; and (5) develop and demonstrate methods of community outreach and education in collaboration with the Ann

Arbor Center for Independent Living (AACIL) to reach professionals, consumers, and their families

in other rehabilitation facilities and Centers for Independent Living (CILs) in Michigan. These

objectives emphasize community reintegration as a key outcome. The Model System is in collaboration with the AACIL, with the goal of promoting community reintegration. This partnership ensures

a coordinated approach to clinical care, training, and research that integrates consumer empowerment with comprehensive lifelong follow-up, bringing a consumer-professional synergy to the

project that serves as an example for other Model SCI Systems. This project contributes to the

national statistics database at the University of Alabama at Birmingham.
2-36 Health and Function

Model Spinal Cord Injury Systems

Missouri

Missouri Model Spinal Cord Injury System

University of Missouri/Columbia

Department of Health Psychology

One Hospital Drive, DC046.46

Columbia, MO 65212

nossamanl@health.missouri.edu

http://www.hsc.missouri.edu/~momscis

Principal Investigator: Kristofer Hagglund, PhD, 573/884-1688

Public Contact: Larry Nossaman, 573/884-2899 (V); 573/882-7971 (TTY); Fax: 573/884-2902

Project Number: H133N000012

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $300,000; FY 01 $300,000; FY 02 $300,000

Abstract: The Missouri Model Spinal Cord Injury System (MOMSCIS) is committed to developing, implementing, and evaluating innovative research that promotes independent living and community integration among persons with spinal cord dysfunction. The two studies focus on the effect

of a consumer-directed personal assistance services training intervention on consumer satisfaction,

independent living, and community integration. The purpose of Study 1 is to develop, implement,

and evaluate the in-person Individualized Management of Personal Assistant/Consumer Teams

(IMPACT) workshop. The purpose of Study 2 is to assess whether this workshop can be implemented as effectively via video teleconferencing as in person, thereby increasing dramatically its

dissemination potential. The objectives of the studies are: (1) to determine the effect of the IMPACT

workshop on consumer satisfaction, the incidence of secondary conditions, activity, and participation (as defined by the ICIDH-2); (2) to determine the effect of the IMPACT workshop on personal

assistant’s job satisfaction, job stress, and attrition; (3) to test for differences in outcomes between

the participants who attended the workshop in-person and those who attend the workshop via video

teleconferencing; and (4) to develop, evaluate, and refine a web version of the interactive IMPACT

workshop. Data from this research provides valuable information for future studies seeking to

document changes in personal independence and community integration. This project contributes to

the national statistics database at the University of Alabama at Birmingham.
Health and Function 2-37

Model Spinal Cord Injury Systems

New Jersey

Northern New Jersey Spinal Cord Injury System

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052-1499

dtulsky@kmrrec.org

http://www.kmrrec.org/NNJSCIS/index.html

Principal Investigator: Joel A. DeLisa, MD, 973/243-6805

Public Contact: David Tulsky, PhD, Co-Investigator; Steven Kirshblum, Co-Investigator, 973/243-

6849; 973/243-6916; Fax: 973/243-6861

Project Number: H133N000022

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $345,000; FY 01 $344,724; FY 02 $345,000

Abstract: The Northern New Jersey Spinal Cord Injury System (NNJSCIS) attempts to improve

outcomes for persons with SCI through novel interventions and expanded service delivery options.

The NNJSCIS is composed of Kessler Medical Rehabilitation Research and Education Corporation,

Kessler Institute for Rehabilitation, and University of Medicine and Dentistry of New Jersey-University Hospital. The NNJSCIS has an interdisciplinary system of rehabilitation care specifically

designed to meet the needs of individuals with SCI. It includes emergency medical services; acute

care; psychological, social, and vocational services; peer support; independent living services;

community and job placement, long-term community follow-up; and health maintenance. Some of

the research and demonstration projects target three of the most common secondary conditions

(pressure ulcers, shoulder pain, and urinary tract infections). Other studies promote wellness by

reducing obesity, examine the relation between health literacy and outcomes, and identify risk

factors and prevent potential problems. One project operationalizes the newly developed Clinical

Practice Guidelines. The NNJSCIS contributes to the National Statistics Data Center.
2-38 Health and Function

Model Spinal Cord Injury Systems

New York

Mount Sinai Spinal Cord Injury Model System

Mount Sinai School of Medicine

Department of Physical Medicine and Rehabilitation

One Gustave L. Levy Place

Box 1240

New York, NY 10029-6574

marcel.dijkers@mssm.edu

http://www.mssm.edu/rehab/spinal

Principal Investigator: Kristian T. Ragnarsson, MD

Public Contact: Marcel Dijkers, PhD, 212/659-9340; Fax: 212/348-5901

Project Number: H133N000027

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $320,000; FY 01 $320,000; FY 02 $320,000

Abstract: The Mount Sinai Spinal Cord Injury Model System (MS-SCI-MS) of the Department of

Rehabilitation Medicine of Sinai Hospital (MSH) and the Mount Sinai School of Medicine (MSSM)

in New York City provides comprehensive care to meet the diverse needs of persons with SCI in its

catchment area. There are four components of the system: (1) comprehensive clinical care; (2)

research (both center-specific research and contributions to the national statistics database); (3)

dissemination, education, and training; and (4) injury prevention. The comprehensive clinical program stresses interdisciplinary care, and employs a primary team model to enhance coordination

among caregivers. Comprehensive outpatient rehabilitation services and long-term follow-up at

MSH are also included. Rehabilitation services include an evaluation program for a high-tech

wheelchair and seating system, a lower-extremity functional electrical stimulation ergometry program, psychosocial services, extensive VR services, a consumer-directed program to promote

community reintegration (DO IT!), and a women’s peer group. Specialty medical and surgical

services include a fertility program for males with ejaculatory dysfunction, intrathecal pumps for

treatment of spasticity, upper extremity reconstruction, and cutting-edge technology. A preventive

health care demonstration project for screening and early intervention of secondary medical conditions is included as a collaborative effort of the MS-SCI-MS and the Spinal Cord Damage Research

Center at the Bronx Veterans Affairs Medical Center. The research program of MS-SCI-MS consists

of two studies relevant to one of the most disabling secondary conditions of SCI, chronic pain: (1)

meta-analyses of pain reports and pain treatments; and (2) a prospective study of pain. This project

contributes to the national statistics database at the University of Alabama at Birmingham.
Health and Function 2-39

Model Spinal Cord Injury Systems

Pennsylvania

Demonstration of a Model Spinal Cord Injury System Center

Thomas Jefferson University

Jefferson Medical College

132 South 10th Street

375 Main Building

Philadelphia, PA 19107-5244

mary.call@mail.tju.edu

http://www.spinalcordcenter.org

Principal Investigator: John F. Ditunno, Jr., MD, 215/955-5580

Public Contact: Mary Patrick, 215/955-6579; Fax: 215/955-5152

Project Number: H133N000023

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $370,000; FY 01 $370,000; FY 02 $370,000

Abstract: The Regional Spinal Cord Injury Center of Delaware Valley (RSCICDV) is a comprehensive program of coordinated patient care, education, and research activities. The RSCICDV: (1)

conducts on-site research focusing on improved outcome measures to meet Federally established

objectives; (2) refines and improves the RSCICDV’s operational services and demonstration

projects; and (3) conducts four development projects including development of an SCI web site,

implementation of an SCI Care Path, development of a Pressure Sore Program, and employing

persons with SCI through hireAbility. The on-site research includes four experiments: (1) validation

of the Walking Index of Spinal Cord Injury (WISCI) scale in a clinical setting for severity and

hierarchical ranking; (2) validation of WISCI scale for elements of a disability measure for distance,

speed, and endurance into WISCI levels; (3) demonstration that the WISCI scale is responsive to

change in a clinical trial setting; and (4) demonstrate consumer preference for walking. The four

development projects include: (1) improved access to information via the web site; (2) implementation of a critical pathway for more efficient heathcare delivery; (3) increased employment and

advancement of employment through hireAbility; and (4) increased monitoring of pressure sores

and strategies for prevention. This project contributes to the national statistics database at the University of Alabama at Birmingham. This project participates in the NIDRR Scholars program,

providing motivated undergraduates with internship experience in disability research.
2-40 Health and Function

Model Spinal Cord Injury Systems

Pennsylvania

University of Pittsburgh Model Center on Spinal Cord Injury

University of Pittsburgh

7180 Highland Drive, 151R-1

Pittsburgh, PA 15206

Principal Investigator: Michael L. Boninger, MD, 412/365-4861

Public Contact:

Project Number: H133N000019

Start Date: December 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $320,000; FY 01 $320,000; FY 02 $320,000

Abstract: The University of Pittsburgh Model Center on Spinal Cord Injury (UPMC-SCI) represents the efforts of dedicated consumers, clinicians, and researchers. The UPMC-SCI’s research

focus is on innovations in AT. The research projects evaluate the impact of selected innovations in

technology on service delivery and on outcomes such as function, independence, and employment.

One project is addressing a shortcoming in AT research through the use of a new dynamic outcome

measure developed by Professor David Gray. Researchers are also testing an innovative pushrimactivated, power-assisted wheelchair that has great potential to improve mobility for individuals with

tetraplegia. An additional project is investigating the impact of a new mobility device known as

IBOT, which is capable of balancing on two wheels, climbing curbs, and going over uneven terrain.

This represents the first study of the IBOT in a real world environment. In addition to this research,

the center provides a model of care for individuals with SCI. SCI care at the University of Pittsburgh

is provided in a multidisciplinary manner with a high level of communication among the constituent

services. The fully implemented system of continuity of treatment begins with the emergency

response at the scene of injury and continues with comprehensive treatment and rehabilitation from

medical/surgical- to acute-stage rehabilitation through utilization of AT services and VR.
Health and Function 2-41

Model Spinal Cord Injury Systems

Texas

Texas Model Spinal Cord Injury System

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Street

Houston, TX 77030-3408

khart@bcm.tmc.edu

http://www.bcm.tmc.edu/pm&r/sci/research/modelsystem

Principal Investigator: William H. Donovan, MD, 713/797-5912

Public Contact: Karen A. Hart, PhD, 713/797-5946 (V); 713/797-5790 (TTY); Fax: 713/797-5982

Project Number: H133N000004

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $330,000; FY 01 $330,000; FY 02 $330,000

Abstract: The Texas Model Spinal Cord Injury System (TMSCIS) provides services along the

entire continuum of care from emergency medical service to long-term follow-up and management

of secondary conditions. TMSCIS performs an analytic longitudinal investigation of disability

models to explore and quantify the interaction among various individual and environmental variables. TMSCIS operationalizes the Institute of Medicine model disability utilizing state-of-the-art

measurement techniques and comprehensive statistical approaches to test hypotheses about dynamic

interrelations of persons with SCI and their environment. This investigation involves following

newly injured persons with SCI for two years after injury. Measurements are taken of pre-injury life

conditions, enabling processes, as well as, personal, psychological, and physical environments. This

project contributes to the national statistics database at the University of Alabama at Birmingham. In

addition, the project develops and tests theoretically derived structural models from the national

database and other existing data sources.
2-42 Health and Function

Model Spinal Cord Injury Systems

Virginia

VCU Model Spinal Cord Injury Center

Virginia Commonwealth University

School of Medicine

Department of Physical Medicine & Rehabilitation

Box 980661

Richmond, VA 23298-0677

wmckinle@hsc.vcu.edu

http://www.pmr.vcu.edu/division/sci/index.html

Principal Investigator: William O. McKinley, MD, 804/828-0861

Public Contact: Michael Tewksbury, 804/828-0861; Fax: 804/828-5704

Project Number: H133N000015

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $310,000; FY 01 $310,000; FY 02 $310,000

Abstract: This project develops and implements a Model Spinal Cord Injury System at Virginia

Commonwealth University/Medical College of Virginia (VCU/MCV), with a concentrated emphasis

on employment. Researchers monitor and assess the impact of interventions, advancing technology,

and policy changes on employment following SCI. Collaborating partners include VCU/MCV’s

Rehabilitation Research and Training Center on Workplace Supports, the Virginia Department of

Rehabilitation Services, and the other SCI Model Systems delivery of care. Additionally, the project

partners with the Mid-Atlantic Paralyzed Veterans Association in several training, dissemination,

and other mutual outreach activities. Research studies involve use of the national statistics database,

a major employment policy study across 18 states, a major study with the Virginia Department of

Rehabilitation Services on employment outcomes (e.g., earning histories), and an evaluation of

technology training on employment outcomes. Involvement of SCI mentors in training new vocational mentors with SCI is also an important component of the work. This project contributes to the

national statistics database at the University of Alabama at Birmingham.
Health and Function 2-43

Model Spinal Cord Injury Systems

Washington

Northwest Regional Spinal Cord Injury System

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98105-6613

scirehab@u.washington.edu

http://depts.washington.edu/rehab/sci

Principal Investigator: Diana D. Cardenas, MD, 206/543-8171

Public Contact: Fax: 206/685-3244

Project Number: H133N000003

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $330,000; FY 01 $330,000; FY 02 $330,000

Abstract: The University of Washington’s Northwest Regional Spinal Cord Injury System

(NWRSCIS) serves a critical mass of patients with SCI and has all the necessary disciplines to

provide state-of-the-art medical, surgical, and rehabilitation care. NWRSCIS has four objectives: (1)

examine interventions to improve outcomes in the preservation or restoration of function or the

prevention and treatment of secondary conditions; (2) contribute to the national database; (3) maintain specialized clinical programs; and (4) develop and maintain education programs for consumers

and families, especially for those who belong to minority and disadvantaged groups. In addition, the

Center provides for the widespread dissemination of research and demonstration findings through its

publications and web site. This project contributes to the national statistics database at the University

of Alabama at Birmingham.
2-44 Health and Function

Model Traumatic Brain Injury Systems Model Traumatic Brain Injury Systems

Alabama

UAB TBI Model System

University of Alabama at Birmingham

Spain Rehabilitation Center

Physical Medicine and Rehabilitation

619 - 19th Street South, SRC529

Birmingham, AL 35249-7330

novak@uab.edu

http://www.uab.edu/tbi

Principal Investigator: Thomas A. Novack, PhD

Public Contact: 205/934-3454

Project Number: H133A020509

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000

Abstract: This project provides a multidisciplinary system of rehabilitation care specifically designed to meet the needs of individuals with TBI, and, as demonstrated over the past four years as a

TBIMS, adequately enrolls subjects to complete research projects successfully. The University of

Alabama at Birmingham (UAB) is maintaining and further developing a Traumatic Brain Injury

Model System (TBIMS) that improves rehabilitation services and outcomes for persons with TBI. In

addition to contributing data to the TBI National Database, the UAB TBIMS conducts two research

projects: (1) an examination of the use of a serotonin agonist medication (sertraline) to lessen the

incidence and severity of depression during the first year of recovery following TBI. (2) a study of

the impact of a training program in problems solving for caregivers.
Health and Function 2-45

Model Traumatic Brain Injury Systems

California

Northern California Traumatic Brain Injury Model System of Care

Santa Clara Valley Medical Center (SCVMC)

Rehabilitation Research Center

950 South Bascom Avenue, Suite 2011

San Jose, CA 95128

tbisci@tbi-sci.org

http://www.tbi-sci.org

Principal Investigator: Tamara Bushnik, PhD, 408/295-9896, ext. 16

Public Contact: Fax: 408/295-9913

Project Number: H133A020524

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $364,038

Abstract: This project conducts two studies to better characterize the type and impact of fatigue on

the TBI population: (1) a cross-sectional study of people up to ten years post-TBI and (2) a longitudinal study that focuses on the evolution of fatigue over the first two years post-injury. Both studies

utilize standardized measurements of fatigue, as well as those for depression/affective disorders,

sleep disturbance, activity scales, and measurements of hormone levels reflective of the health of the

neuroendocrine system. Two additional studies characterize the impact of late posttraumatic seizures

on recovery: (1) a study utilizing data already in the TBIMS National Database that compares the

functional, vocational, and medical complication outcomes of those with and without late posttraumatic seizures; (2) a study in collaboration with Denver Hospital Medical Center that interviews

individuals at both sites who participated in a previously funded NIDRR grant on seizure risk identification. This study further evaluates barriers to the environment, transportation, and challenges in

control of their seizures.
2-46 Health and Function

Model Traumatic Brain Injury Systems

Colorado

The Rocky Mountain Regional Brain Injury System (RMRBIS)

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80110

charrison-felix@craighospital.org

http://www.craighospital.org

Principal Investigator: Gale G. Whiteneck, PhD, 303/789-8204

Public Contact: Cynthia Harrison-Felix, 303/789-8565; Fax: 303/789-8441

Project Number: H133A020510

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000

Abstract: The RMRBIS conducts three research projects: Study 1 examines the effects of Modafinil

on fatigue and excessive sleepiness after TBI. Study 2 assesses the effectiveness of a group therapy

intervention for social pragmatic communication. Study 3 uses the unique database assets of Craig

Hospital and investigates the environmental and clinical factors that influence outcome over a 40

year time frame to understand the process of living and aging with a TBI. In addition to clinical

research and service, Craig Hospital, as the RMRBIS, documents an outstanding record of dissemination, for all customers including clinical consumers, community agencies and advocacy groups,

other clinical service centers and systems, and professionals engaged in the treatment of persons

with TBI.
Health and Function 2-47

Model Traumatic Brain Injury Systems

Georgia

Georgia Model Brain Injury System (GAMBIS)

Emory University

Center for Rehabilitation Medicine

1441 Clifton Road Northeast, Suite 215

Atlanta, GA 30322

anthony_stringer@emory.org

Principal Investigator: Anthony Stringer, PhD

Public Contact: 404/712-5667; Fax: 404/712-5668

Project Number: H133A980028

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01 $345,000; FY 02

(No-cost extension through 12/31/2002)

Abstract: The Georgia Model Brain Injury System (GAMBIS) has the capacity to follow approximately 45 percent of the moderate to severe brain injury cases expected annually in metropolitan

Atlanta, and combines the academic resources of Emory University and the Crawford Research

Institute of Shepherd Center, Inc., with the clinical resources inherent in six trauma centers, two

inpatient rehabilitation programs, and multiple postacute and subacute rehabilitation pathways.

Project activities include: comparisons between the efficacy, cost-effectiveness, and cost per qualityadjusted life year for patients in home-based and facility-based subacute care; outcome comparisons

between TBI patients grouped by injury severity to determine optimal matches between patients and

service delivery methods; the impact of violence as a cause of injury on cost and outcome within all

postacute treatment pathways; studying the efficacy of telecommunications technology and a consumer-directed Clubhouse Program in supporting community and vocational reentry; and the role of

traditional (e.g., injury severity, level of insurance benefits) and novel (e.g., progesterone level,

apolipoprotein E genotype) predictors of outcome and subjective well-being following TBI. This

project contributes to the national statistics database at the Kessler Medical Rehabilitation Research

and Education Corporation.
2-48 Health and Function

Model Traumatic Brain Injury Systems

Michigan

Southeastern Michigan Traumatic Brain Injury System (SEMTBIS)

Wayne State University and Rehabilitation Institute of Michigan

Department of Physical Medicine and Rehabilitation

261 Mack Boulevard

Detroit, MI 48201

rhanks@dmc.org

http://www.semtbis.org

Principal Investigator: Robin A. Hanks, PhD, 313/745-9763

Public Contact: Deborah Wood, 313/745-1188; Fax: 313/966-7502

Project Number: H133A020515

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $364,996

Abstract: The SEMTBIS program conducts projects developed with the help of SEMTBIS consumers, as well as other members of the Detroit community. Three studies evaluate: (1) a peermentoring intervention, (2) a dynamic system of survivor and significant-other well-being, and (3)

resumption of driving after brain injury. Study 1 is a randomized controlled trial of a peer-mentoring

program for both survivors and their caregivers. Study 2 studies 250 community-dwelling adults

with TBI and their caregivers/significant others, exploring the relationship of survivor-caregiver

situations with survivor distress and family dysfunction. It also studies whether or not social support

acts as a moderating influence upon the well-being of persons with TBI. Study 3 examines correlates

of driving after brain injury: barriers, fitness to drive, and community rapport. Participatory action is

a central component of project implementation, evaluation, and dissemination. SEMTBIS participates in clinical and systems analysis studies of the TBI Model Systems by collecting and contributing data to the uniform, standardized national database.
Health and Function 2-49

Model Traumatic Brain Injury Systems

Minnesota

Mayo Clinic Traumatic Brain Injury Model System

Mayo Medical Center

200 First Street

Rochester, MN 55905

malec.james@mayo.edu

http://www.mayo.edu/model-system

Principal Investigator: James F. Malec, PhD

Public Contact: Anne Moessner, 507/255-3116; Fax: 507/255-7696

Project Number: H133A020507

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $364,891

Abstract: This project (TBIMS) focuses on three local research projects: (1) decision-making and

outcomes of inpatient and outpatient rehabilitation pathways, (2) very-long-term (5-15+ years

postinjury) process and outcome for people with TBI, identified through the Rochester Epidemiology Project, and (3) telehealth-based (Internet) cognitive rehabilitation. Telehealth is a potentially

important innovation in this system’s region, where distance limits access to medical and rehabilitation services and many consumers have limited access to health care, insurance, employment, and

viable political representation. In addition to professional publications and presentations, continuing

dissemination efforts include the Mayo Clinic TBIMS web-site, the TBI Hotline, the Messenger

newsletter, contributions to the COMBI web site and COMBI and TBIMS newsletters, and regular

participation by Mayo Clinic TBIMS staff at all annual state BIA meetings in the extended five-state

geographical region. During the next five years, the project plans to develop an advocacy training

program to help people with TBI and their families and significant others in the region learn selfadvocacy skills. Members of the Mayo TBI Regional Advisory Council were proactively involved in

developing this project.
2-50 Health and Function

Model Traumatic Brain Injury Systems

Mississippi

Traumatic Brain Injury Model System of Mississippi (TBIMSM)

Methodist Rehabilitation Center

Brain Injury Program

1350 East Woodrow Wilson Center

Jackson, MS 39216

marks@mmrcrehab.org

http://www.mmrcrehab.org

Principal Investigator: Mark Sherer, PhD

Public Contact: 601/364-3448; Fax: 601/364-3558

Project Number: H133A020514

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $365,000

Abstract: The TBI Model System of Mississippi (TBIMSM) is a collaborative project of Methodist

Rehabilitation Center (MRC) and the University of Mississippi Medical Center. This project involves three studies. The first study investigates two medications in a parallel group, double blind,

placebo controlled, randomized assignment design. The drugs under investigation have differing

neurotransmitter effects, although each drug has been reported to have therapeutic benefit. The

target population for this study is persons with TBI who are in a state of post-traumatic confusional

state (PCS). This is considered a state of the art approach to PCS given the severe lack of controlled

research to measure medication usage in PCS. The second study develops and conducts a trial of an

intervention to improve the therapeutic alliances between persons with TBI and family members and

professional staff serving persons with TBI in a post-acute brain injury neurorehabilitation program

(PABIR). The third research project investigates the use of transcranial magnetic stimulation (TMS)

to improve the characterization of motor disorders after TBI. Current research suggests that improved use and better understanding of TMS technology will lead to new intervention trials to

improve interventions to improve motor function after TBI.
Health and Function 2-51

Model Traumatic Brain Injury Systems

Missouri

Missouri Model Traumatic Brain Injury System (MOMBIS)

University of Missouri/Columbia

Department of Physical Medicine and Rehabilitation

DC046.00

One Hospital Drive

Columbia, MO 65212

mombis@health.missouri.edu; nossamanl@health.missouri.edu

http://www.hsc.missouri.edu/~mombis

Principal Investigator: Brick Johnstone, PhD, 573/882-6258

Public Contact: Larry Nossaman, 573/884-2899 (V); 573/884-7971 (TTY); Fax: 573/884-2902

Project Number: H133A980008

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $344,999; FY 99 $344,999; FY 00 $344,999; FY 01 $344,999; FY 02

(No-cost extension through 9/30/2003)

Abstract: This model system, based in central Missouri, provides a continuum of TBI care to an

underserved and understudied population: communities that are primarily rural. The project also

completes a series of innovative research programs and contributes to the national statistics database

at the Kessler Medical Rehabilitation Research and Education Corporation. MOMBIS develops a

model system of care that: (1) investigates the efficacy of alternative methods of service-delivery

interventions after inpatient rehabilitation discharge and after other postacute treatment pathways;

(2) identifies and evaluates interventions using emerging technology that can improve vocational

outcomes and community integration; (3) develops predictors of rehabilitation outcome, including

subjective well-being, at hospital discharge and at long-term follow-up; (4) examines the relationships among cost of care, specific treatment interventions, and functional outcomes; and (5) examines implications of TBI caused by violence on treatment interventions, rehabilitation costs, and

long-term outcomes. Individual MOMBIS projects are evaluating the efficacy of a community-based

support system, the efficacy of a partial weight-bearing gait retraining program, and predictors of

vocational and financial success for clients of the state VR division. MOMBIS is also piloting

research in: (1) the transportation challenges of individuals with TBI in rural areas and how those

challenges affect outcomes, (2) the actual amount and source of public and private financial assistance being received by individuals with TBI, and (3) the relationship between challenges in access

to environmental resources and outcomes for individuals with TBI living in rural areas of Missouri.
2-52 Health and Function

Model Traumatic Brain Injury Systems

New Jersey

Northern New Jersey Traumatic Brain Injury System (NNJTBIS)/

NIDRR TBI Model Systems National Database

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

tbi@kmrrec.org

http://www.kmrrec.org/KM/nnjtbis/index.html

Principal Investigator: Mark V. Johnston, PhD, Project Director, TBIMS; Mitchell Rosenthal,

PhD, Project Director, TBI National Database

Public Contact: 973/243-2015; Fax: 973/243-6963

Project Number: H133A980030

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $343,381; FY 99 $343,381; FY 00 $343,381 (NNJTBIS); $250,000

(National TBI MS Database) FY 01 $343,381 (NNJTBIS) $250,000 (National TBI MS Database)

FY 02 (No-cost extension through 9/30/2003)

Abstract: The Northern New Jersey Traumatic Brain Injury System (NNJTBIS) is a comprehensive

set of projects designed to improve the quality of care for people with TBI in New Jersey and to

answer selected research questions. In both research and development projects, the NNJTBIS emphasizes the interplay of medical, neuropsychological, social, and economic factors. Three small

randomized clinical trials include: an intervention program to train caregivers to manage behavior

problems in the home or other natural settings, a program of cognitive remediation and cognitivebehavioral therapy for people with TBI living in the community, and an improvement to a cognitive

remediation program involving enhanced choice by the person with TBI. Other research addresses

issues of: how to improve outcome measures by incorporating the expressed values and perceptions

of people served, financial issues and costs, the implications of violence in the etiology of TBI,

substance abuse, and consequences of delay or refusal of Medicaid coverage for people with severe

TBI injuries. Demonstration projects fill gaps in VR in New Jersey by providing augmented work

trials and education of VR counselors regarding TBI, develop trial cognitive remediation and social

support tools for the Internet, and educate emergency room personnel regarding mild TBI. Educational offerings for people with TBI, their families, and professionals are provided through conferences, retreats, talks, support groups, and development of a TBI resource center. Local advisory

boards advise System staff, and plans include a task force to improve the system of care in New

Jersey. The project currently manages the national statistics database for the Model TBI System

projects. Additional goals include coordinating research and dissemination activities with other

NIDRR TBI grantees to optimize research output, minimize redundancy of effort, and engage in

collaborative dissemination. This project participates in the NIDRR Scholars program, providing

motivated undergraduates with internship experience in disability research.
Health and Function 2-53

Model Traumatic Brain Injury Systems

New York

New York Traumatic Brain Injury Model System (NYTBIMS)

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

Research and Training Center

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

http://www.mssm.edu/tbinet

Principal Investigator: Wayne Gordon, PhD

Public Contact: 212/659-9372; Fax: 212/348-5901

Project Number: H133A020501

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $365,000

Abstract: This project advances the understanding of TBI and its consequences and improves

rehabilitation outcomes. The research projects focus on depression and fatigue, impairments that

limit participation in community, and vocational activities: Treatment of Post-TBI Depression is a

randomized clinical trial to examine the efficacy of sertraline (Zoloft) in the treatment of depression

and anxiety after traumatic brain injury. Study of Post-TBI Fatigue and its Treatment investigates

the components, consequences, and correlates of post-TBI fatigue, and in a randomized clinical trial,

evaluates the benefits of modafenil (Provigil) to treat fatigue in individuals with TBI.
2-54 Health and Function

Model Traumatic Brain Injury Systems

North Carolina

Carolinas Traumatic Brain Injury Rehabilitation and Research System

(CTBIRRS)

Charlotte Mecklenburg Hospital Authority

Charlotte Institute of Rehabilitation

1100 Blythe Boulevard

Charlotte, NC 28203

fhammond@carolinas.org

http://www.carolinas.org

Principal Investigator: Flora M. Hammond, MD

Public Contact: 704/355-4330; Fax: 704/355-0709

Project Number: H133A020522

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $365,000

Abstract: This project investigates post-traumatic irritability, its relationship to the caregiver as a

component of the environment, the reaction to amantadine hydrochloride, and the nature of the

problem as experienced by those in the community. The mission of CTBIRRS is to improve care

and outcomes for survivors of TBI through medical treatments, services, research, and dissemination

to expand and enhance services throughout their lifetime. The system begins with prevention and

emergency medical services and extends through intensive care, acute care, and comprehensive

medical rehabilitation to long-term follow-up, community reintegration, and vocational rehabilitation.
Health and Function 2-55

Model Traumatic Brain Injury Systems

Oregon

Oregon Traumatic Brain Injury Model System

Oregon Health and Science University

3181 Southwest Sam Jackson Park Road, L472

Portland, OR 97201-3098

carneyn@ohsu.edu

http://www.ohsu.edu/som-ntrg/neurotrauma/otbims.html

Principal Investigator: Nancy Carney, PhD

Public Contact: 503/494-0663; Fax: 503/494-4640

Project Number: H133A980027

Start Date: October 1, 1998

Length: 48 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $345,000; FY 99 $345,000; FY 00 $345,000; FY 01 $345,000; FY 02

(No-cost extension through 9/30/03)

Abstract: This model system compares treatment and outcomes among people with TBI cared for

within the model system versus those who follow alternative care paths. The sample: (1) includes

trauma system patients who remain in Portland and those who return to rural homes after discharge,

allowing for a comparison of care paths as determined by environment; (2) assesses outcomes based

on the type and extent of care by evaluating payer programs by level and type of funding; and (3)

develops and validates two key predictors of outcome: a measure of acute care and a social adjustment scale. This understanding of outcomes as determined by care path (model versus alternative),

environment (rural versus urban), and payer program (level of funding) is used to address the three

primary needs of Oregon residents with TBI and their families: information, access, and quality.

Ancillary demonstration projects implement and evaluate caregiver training and home-based

multidisciplinary rehabilitation as an alternative to postacute treatment interventions. This project

contributes to the national statistics database at the Kessler Medical Rehabilitation Research and

Education Corporation.
2-56 Health and Function

Model Traumatic Brain Injury Systems

Pennsylvania

The Moss Traumatic Brain Injury Model System

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

1200 West Tabor Road, Korman Suite 213

Philadelphia, PA 19141

thart@einstein.edu

Principal Investigator: Tessa Hart, PhD

Public Contact: 215/456-6544; Fax: 215/456-5926

Project Number: H133A020505

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $365,000

Abstract: This project provides cutting-edge care for persons with traumatic brain injury (TBI),

conducts research on treatment of TBI in 3 key areas, and disseminates new knowledge to consumer

and professional audiences, uses an extensive collaborative network. Seven Trauma Centers and two

nationally renowned rehabilitation facilities, MossRehab and Magee Rehabilitation, collaborate in

the clinical component of the Moss Traumatic Brain Injury Model System. The Moss Rehabilitation

Research Institute administers the research component, which includes collaborative longitudinal

data collection, as well as three local research projects on: (1) the use of assistive technology for

cognitive and behavioral disabilities, (2) validation of an observational rating scale of attention

dysfunction in a psychostimulant treatment trial, and (3) use of botulinum toxin for treating severe

spasticity caused by TBI. The Moss TBIMS emphasizes consumer involvement in clinical program

improvement, research design and dissemination via collaboration with the Brain Injury Association

of Pennsylvania and other consumers.
Health and Function 2-57

Model Traumatic Brain Injury Systems

Pennsylvania

University of Pittsburgh Brain Injury Model System (UPBI)

University of Pittsburgh

3471 Fifth Avenue

Suite 201 Kaufmann Building

Pittsburgh, PA 15213

zafonterd@msx.upmc.edu

Principal Investigator: Ross D. Zafonte, DO

Public Contact: 412/648-6979; Fax: 412/692-4410

Project Number: H133A020502

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $364,484

Abstract: The UPBI’s research focus is on innovation in rehabilitation technology for persons with

TBI. The project evaluates the impact of selected innovations in technology on service delivery,

functional outcome, and as a therapeutic intervention. It addresses the shortcoming in wheelchair

design for persons with brain injury by evaluating a unique personalized powered mobility system.

Collaboration with the Robotics Institute at Carnegie Mellon University allows researchers to perform a randomized trial evaluating the efficacy of virtual reality and robotics for persons with TBI.

Finally, the project uses intelligent navigation technology to implement and evaluate a web-based

virtual case manager support structure for persons with TBI and their families.
2-58 Health and Function

Model Traumatic Brain Injury Systems

Texas

North Texas Traumatic Brain Injury Model System (NT-TBIMS)

The University of Texas Southwestern Medical Center

5323 Harry Hines Boulevard

Dallas, TX 75390

ramon.diaz-arrestia@utsouthwestern.edu

Principal Investigator: Ramon R. Diaz-Arrastia, MD, PhD, 214/648-6409

Public Contact: Project Administrator, Fax: 214/648-6320

Project Number: H133A020526

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $364,999

Abstract: The NT-TBIMS provides comprehensive continuum of care for TBI patients from the

time of arrival at the emergency department through the intensive care unit, inpatient and outpatient

rehabilitation, and long-term follow-up after community integration. Additionally, the NT-TBIMS

conducts two research projects aimed at obtaining predictive information regarding outcome after

TBI, which is important to the goal of developing novel therapies and tailoring these therapies to

individual patients: (1) to determine whether the inheritance of particular alleles in certain candidate

genes is associated with a greater risk of poor outcome after TBI; and (2) to determine whether

functional magnetic resonance imaging of the brain (fMRI) is predictive of functional recovery after

TBI.
Health and Function 2-59

Model Traumatic Brain Injury Systems

Virginia

Traumatic Brain Injury Model System

Virginia Commonwealth University

Department of Physical Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0452

jmarwitz@hsc.vcu.edu

http://www.neuro.pmr.vcu.edu

Principal Investigator: Jeffrey S. Kreutzer, PhD, 804/828-9055

Public Contact: Jennifer Marwitz, 804/828-3704; Fax: 804/828-2378

Project Number: H133A020516

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000

Abstract: This project, utilizing rigorous scientific methods, examines the benefits of intervention

during the acute and post-acute periods after brain injury. TBIMS and other researchers have primarily expended their energies on delineating outcomes. Until recently, concerns about survivors’

emotional well-being and adjustment to injury received scant attention. Yet, recent studies have

identified a high prevalence of depression, with many survivors reporting feelings of hopelessness,

diminished self-esteem, and social isolation. Brain injury also affects the family system; family

members commonly describe emotional distress, lack of respite, financial stress, and lack of community support. Projects in two major research areas focus predominantly on survivors. One study

examines pharmacological approaches to the treatment of depression, while another examines a

structured approach to the treatment of acute cognitive and neurobehavioral problems. Examining

the benefits of intervention programs for family members is a third major research area.
2-60 Health and Function

Model Traumatic Brain Injury Systems

Washington

University of Washington Traumatic Brain Injury Model System

University of Washington

Department of Rehabilitation Medicine

Box 356490, BB-941 Health Sciences

Seattle, WA 98195

krbell@u.washington.edu

http://depts.washington.edu/rehab/tbi

Principal Investigator: Kathleen R. Bell, MD, 206/685-0935

Public Contact: Fax: 206/685-3244

Project Number: H133A020508

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $365,000

Abstract: This program conducts research relevant to TBI, enhances services to consumers, and

furthers the National Database and intersystem collaboration. The program’s three research projects

are: (1) a randomized controlled intervention study examining the effect of exercise on depression

after TBI. This low-cost community intervention seeks to combat depression and emotional distress

in persons with stable TBI, by employing exercise as a positive approach to improved emotional and

physical functioning and socialization. (2) an examination of what characterizes TBI survivors who

are able to return to employment and hold jobs that are stable and complex in nature, utilizing both

the UW TBI longitudinal database and the Model System database. (3) an examination of the impact

of the Medicare prospective payment system for inpatient rehabilitation on TBI survivors receiving

access to acute rehabilitation efforts. This collaborative project uses the TBI Model Systems database and other national data for analyses. The program also contributes to the National Database.
Health and Function 2-61

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

Alabama

Use of Propranolol to Manage Behavioral Dysfunction and Agitation in

Persons with Postacute Brain Injury

University of Alabama/Birmingham

Department of Physical Medicine and Rehabilitation

619 - 19th Street South, SRC 529

Birmingham, AL 35294-7330

meythaler@sun.rehabm.uab.edu

http://main.uab.edu/show.asp?durki=30833

Principal Investigator: Jay M. Meythaler, JD, MD, 205/934-2088

Public Contact: Alice Johnson, 205/934-9494; Fax: 205/975-4896

Project Number: H133G000072

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $123,967; FY 01 $123,967; FY 02 $112,313

Abstract: This project conducts research to confirm the empirically reported efficacy of the betaadrenergic receptor blocker propranolol in managing behavioral dyscontrol following brain injury

(BI) in the postacute phase (greater than one year). The study builds on published case reports of

propranolol’s effectiveness. It implements the first-ever randomized double-blind crossover trial of

propranolol with placebo control in 50 individuals who are more than one year post-BI, in an outpatient setting. The project establishes whether propranolol decreases the behavioral dyscontrol and

agitation commonly seen in postacute BI; despite widespread empirical use of propranolol, such

decreases have never been established conclusively. It also provides for detailed measurement of

possible neurocognitive side effects of propranolol, which were not evaluated in previous studies.

The study utilizes the Agitated Behavioral Scale (ABS) for valid and reliable measurement of

agitation. The project utilizes functional brain imaging techniques to provide preliminary insights

into possible sites and mechanisms of action. If propranolol is thus documented to be useful in the

postacute BI population, functional MRI and SPECT studies exploring its mechanisms of action is

warranted.
2-62 Health and Function

Field-Initiated Projects (FIPs)

Arkansas

Developing a Rehabilitation Service Delivery Model for Minority

Farmers with Disabilities

University of Arkansas/Pine Bluff

Agricultural Economics

1200 North University Drive

Mail Slot 4913

Pine Bluff, AR 71601

mwachofi_a@vx4500.uapb.edu

Principal Investigator: Ari K. Mwachofi, PhD

Public Contact: 870/575-7143; Fax: 870/543-8543

Project Number: H133G000192

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $150,000; FY 01 $150,000; FY 02 $150,000

Abstract: This project gathers data from farmers and service providers in Arkansas, Louisiana, and

Mississippi. Using the survey data, the project constructs a model of rehabilitation service delivery

for minority farmers with disabilities based on their needs, perceptions, disabilities, and the most

effective methods of reaching and communicating with them. The main thrust of the project is active

participation by minority farmers in research and model building. Project objectives are to: (1)

identify and interview minority farm households that have members with disabilities; (2) identify

and interview nonminority farm households that have members with disabilities; (3) interview

rehabilitation counselors and county extension agents; (4) build a service delivery model based on

analyses of responses of the farmers, rehabilitation counselors and county extension agents; and (5)

disseminate model and research findings.
Health and Function 2-63

Field-Initiated Projects (FIPs)

California

Improving Muscular Use and Cardio-Respiratory Demand in SpinalCord-Injured Patients Performing Functional Electronically

Stimulated Leg Cycle Ergonometry

University of California - Davis

Department of Mechanical Aeronautical Engineering

2060 Bainer Hall

Davis, CA 95616

mlhull@ucdavis.edu

Principal Investigator: Maury Hull, PhD

Public Contact: 530/752-6220; Fax: 530/752-4158

Project Number: H133G020137

Start Date: January 1, 2003

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $149,971

Abstract: This project develops new stimulation patterns for a functional electrically stimulated

(FES) leg cycle ergometer (LCE) that enable spinal-cord-injured persons to exercise with greater

benefit. Greater benefit is defined as exercising for a longer period of time and at a higher work rate

while involving more leg muscles than is possible with existing ergometers. To reach the general

aim, the research is divided into three phases, each directed towards testing a specific hypothesis: (1)

normal recumbent pedaling can be simulated using a computational musculoskeletal model of the

leg; (2) minimizing muscle fatigue in a forward dynamic simulation of recumbent pedaling yields

computed stimulation patterns that enable an individual with SCI to pedal the FES-LCE for longer

periods of time, and at higher work rates, than is possible with current stimulation patterns; and (3)

using neural stimulation patterns computed from a forward dynamic simulation of recumbent pedaling in which selected muscles of both the upper and lower leg are activated, an individual can pedal

the FES-LCE to obtain a greater cardio-respiratory workout than when only upper leg muscles are

stimulated.
2-64 Health and Function

Field-Initiated Projects (FIPs)

California

Cardiovascular Disease in Women with Spinal Cord Injury and Its

Effect on Participation in Community Activities

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, HB-145

Downey, CA 90242

Principal Investigator: Yaga Szlachcic, MD

Public Contact: Rodney Atkins, PhD; Lili Thompson, PT, 562/401-7221; Fax: 562/803-6354

Project Number: H133G010160

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $141,470; FY 02 $145,835

Abstract: The goals of this project are: (1) to profile cardiovascular disease (CVD) risk factors in

women with SCI, (2) to assess the relationships between CVD risk factors and “observable” CVD in

this group, (3) to assess the associations of CVD risk factors and observable CVD with quality of

life and with participation in community activities among women with SCI, (4) to evaluate standard

interventions for lipid abnormalities and CVD in women with SCI, and (5) to assess the impact lipid

and CVD interventions have on the quality of life and community activity participation of women

with SCI. For these goals “observable” CVD refers to atherosclerotic burden by carotid arterial

intima-media thickness (IMT).
Health and Function 2-65

Field-Initiated Projects (FIPs)

California

Quantified Custom Inserts: An Amputation Prevention Program for

Diabetic Patients

Rancho Los Amigos

7601 East Imperial Highway

Downey, CA 90242

pklab@larei.org

Principal Investigator: Jacquelin Perry, MD; Richard Chambers, MD

Public Contact: Jacquelin Perry, MD, 562/401-7177; Fax: 562/803-5693

Project Number: H133G020002

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $149,999

Abstract: This project identifies footwear factors that reduce plantar pressures and decrease the

incidence of skin ulceration in individuals with diabetes mellitus. Reduction of skin ulceration is

critical for ensuring maximum independence in living and employment and for decreasing the

emotional and financial consequences associated with managing the disease process and subsequent

disability. This project is designed to identify the footwear factors that reduce plantar pressures and

decrease the incidence of skin ulceration experienced by the diabetic foot during walking The

footwear factors include custom contoured insoles and insole durability.
2-66 Health and Function

Field-Initiated Projects (FIPs)

California

Daily Living Context and Pressure Sores in Consumers with Spinal

Cord Injury

University of Southern California

Department of Occupational Science and Occupational Therapy

1540 Alcazar Street, CHP-133

Los Angeles, CA 90089-9003

jwise@usc.edu

http://www.usc.edu/hsc/ihp/ot

Principal Investigator: Florence Clark, PhD, OTR, 323/442-2875

Public Contact: Janis Wise, 323/442-2851; Fax: 323/442-1540

Project Number: H133G000062

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $149,942; FY 01 $147,834; FY 02 $149,837

Abstract: This project examines the beliefs and practices underlying the activities, habits, and daily

routines of 18 ethnically diverse consumers with SCI. The intent is to document how personality,

lifestyle patterns and choices, and environmental context mutually interact within the individually

constructed lives of consumers to influence the development of pressure sores. The problem of

recurrent, medically serious pressure sores represents a key challenge to the ability of individuals

with SCI to experience a full and satisfying life. Although prior research has documented that the

development of pressure sores is in general linked to psychosocial and environmental variables,

there is a need to obtain new, consumer-centered information about how pressure sores can be

minimized through personally tailored adaptive strategies that are responsive to the opportunities

and difficulties embedded in the unique sets of everyday circumstances that characterize individual

lives. A variety of data collection procedures, including participant observation as well as interviews

with consumers, their caregivers, and other associated persons, are analyzed to generate results that

are comprehensive and trustworthy. These results are used to develop a series of applied products,

including: (1) a consumer-oriented self-help manual; (2) a set of guidelines for rehabilitation practice; and (3) a lifestyle-oriented occupational therapy treatment model. Consumer representatives

contribute to all aspects of the project to ensure that it is relevant and maximally useful to the target

population.
Health and Function 2-67

Field-Initiated Projects (FIPs)

Colorado

Mortality and Life Expectancy After Traumatic Brain Injury

Rehabilitation

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80110

charrison-felix@craighospital.org

http://www.craighospital.org

Principal Investigator: Gale G. Whiteneck, PhD, 303/789-8204

Public Contact: Cindy Harrison-Felix, 303/789-8565; Fax: 303/789-8441

Project Number: H133G020182

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $150,000

Abstract: This project investigates mortality, life expectancy, causes of death, and risk factors for

death in individuals with traumatic brain injury (TBI) receiving inpatient rehabilitation and surviving beyond one year post-injury. This research tests the following hypotheses: (1) that TBI increases

mortality and decreases life expectancy among survivors completing rehabilitation, (2) that causes

of death do not match the general population, (3) that the risk of death is greater in certain subgroups, and (4) that survival has increased over the decades of improved care. Products of this

project include: (1) a consumer and professional publication on TBI mortality and life expectancy in

the TBI Model Systems, (2) a consumer and professional publication on TBI mortality and life

expectancy changes over four decades at Craig Hospital, (3) an interactive web site allowing entry

of basic individual and injury characteristics that reports probabilities of various life expectancies,

and (4) a report on the most effective strategy for expanding the TBI Model Systems mortality study

to include all TBI cases rehabilitated at Model System facilities, even before they were designated as

a Model System. This study, lead by the Rocky Mountain Regional Brain Injury System at Craig

Hospital, involves the 17 TBI Model Systems funded by NIDRR.
2-68 Health and Function

Field-Initiated Projects (FIPs)

Delaware

Investigation of the Dynamics of Spasticity in Children with Cerebral

Palsy

Alfred I. duPont Hospital for Children

1600 Rockland Road

Wilmington, DE 19899-0269

fee@gait.aidi.udel.edu

http://www.kidshealth.org

Principal Investigator: Freeman Miller, MD

Public Contact: Dyonne Knotts, 302/651-5921; Fax: 302/651-5951

Project Number: H133G010041

Start Date: November 1, 2001

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $149,708; FY 02 $144,023

Abstract: This project creates a new assessment tool for spasticity in cerebral palsy that quantifies

both the long-term changes in muscle structure and the short-term effects of the hyperexcitable

stretch reflex. The result is a comprehensive testing protocol that can be used in a wide range of

therapeutic interventions. The new device can apply torques about the knee and ankle of a limb with

spasticity in such a way that velocity, acceleration, and the third derivative, jerk, can be varied and

resistance of the limb to movement measured. The device can be used (1) to investigate the reflex

resistance to movement elicited by constant velocity, constant acceleration, and constant jerk; and

(2) to define the passive biomechanics of the limb by applying short duration pulses of torque to the

limb combined with the limb’s position, velocity, and acceleration. This work is unique in the

recognition of the limb with spasticity as a closed loop system consisting of the biomechanics of the

limb and the reflexes (due to motion) feeding back on that limb. As a result of using the new tool,

many therapy protocols such as hippotherapy, stretching, hydrotherapy, range of motion exercises,

and others may be found to be of significant benefit to one component of spasticity over the other.
Health and Function 2-69

Field-Initiated Projects (FIPs)

Georgia

Aging After Spinal Cord Injury: Three Decades of Longitudinal

Research

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road Northwest

Atlanta, GA 30309-1465

lynne_broderick@shepherd.org

http://www.shepherd.org/shepherdhomepage.nsf/Pages/EducationCrawford?OpenDocument

Principal Investigator: J. Stuart Krause, PhD, 404/350-7551

Public Contact: Lynne Broderick, 800/582-6360; 404/367-1348; Fax: 404/350-7596

Project Number: H133G010009

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $149,850; FY 02 $149,858

Abstract: This study performs a sixth data collection in the ongoing Minnesota longitudinal study

(MLS) in order to identify how the life situation of people with SCI has changed over the past three

decades, with an emphasis on evaluating the roles of aging and environmental change. This study

has used a revolving prospective panel design that follows participants longitudinally over time,

adding new samples at different times to counteract attrition. The study was initiated in 1973, with

three subsequent follow-ups carried out over a 25-year period (1984, 1988, 1993, and 1998). A

Southeastern sample was added in 1993 to add a more diverse participant sample with a larger

portion of women and minorities. The 699 respondents from the 25-year follow-up and a new

sample of 500 individuals with SCI are to be asked to complete materials. This sixth study stage is

the most extensive follow-up yet performed, with the addition of several new measures that include:

(1) portions of the Behavioral Risk Factor Surveillance System (BRFSS); (2) expanded assessment

of employment history; (3) a measure of depression that was specially designed to avoid items that

are confounded with health conditions (the Older Adult Health and Mood Questionnaire, OAHMQ);

and (4) a standardized measure of environment, the Craig Hospital Inventory of Environmental

Factors (CHIEF). This study also has the added benefit of greater consumer involvement at each

step of the study. Results of the study enhance both rehabilitation professionalshe:’ and consumers’

understanding of the consequences of aging with SCI and lay the foundation for future interventions.
2-70 Health and Function

Field-Initiated Projects (FIPs)

Illinois

The SPIRATE Project (Spinal Injury Risk Assessment for

ThromboEmbolism)

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1407

Chicago, IL 60611

d-green@nwu.edu

Principal Investigator: David Green, MD, PhD

Public Contact: 312/238-4701; Fax: 312/238-1815

Project Number: H133G990046

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $135,244; FY 00 $139,362; FY 01 $143,645; FY 02 (No-cost extension

through 6/30/2003)

Abstract: The purpose of this study is to develop a risk assessment methodology to guide the

intensity and duration of antithrombotic prophylaxis. The study is performed in two parts: a retrospective analysis of 500 patients treated by the Midwest Regional Spinal Cord Injury Care System

over the past decade, and a prospective analysis of 100 patients admitted for care of spinal cord

injury. In the first part, archival data on the 500 patients is analyzed to identify risk factors for

thromboembolism. In the second part, the 100 patients all receive prophylaxis consisting of compression leggings and Heparin, they are examined daily for clinical evidence of thrombosis, and they

have bilateral contrast venography prior to discharge. Three risk scoring systems are tested. The first

is based on the retrospective study. The second is expanded to include additional factors such as

functional measures and emotional well-being assessments. A third risk scoring system, to be developed, includes the data from the second system as well as the day-to-day changes in the symptoms

recorded over the course of the study for individual patients. The cross-generalizability of the

systems is assessed, and the final instrument is used to assign patients at high risk to more intensive

prophylaxis.
Health and Function 2-71

Field-Initiated Projects (FIPs)

Illinois

Secondary Prevention Trial of Exercise and Diet for Improvement of

Physical Fitness, Independence, and Overall Health in Adult

Paraplegics

University of Illinois/Chicago

College of Health and Human Development Sciences

Department of Human Nutrition and Dietetics

M/C 517

Chicago, IL 60612

braunsch@uic.edu

http://www.uic.edu/orgs/sci-adapt

Principal Investigator: Carol Braunschweig, PhD

Public Contact: 312/996-8055; Fax: 312/413-0319

Project Number: H133G990143

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $149,959; FY 00 $149,988; FY 01 $149,659; FY 02 (No-cost extension

through 5/31/2003)

Abstract: This project investigates the impact of an exercise intervention coupled with nutrition

education on the strength and fitness of a sample of overweight paraplegics with chronic illnesses.

This intervention improves cardiovascular fitness and strength leading to improved independence

and improved overall health. The research objectives are to recruit adult paraplegics with chronic

disease for involvement in the program and then to compare the effects of the program on physical

fitness in participants who have completed the program to physical fitness in those participants

randomized but waiting, during the same 12 weeks, to begin the intervention. The impact of the

program is assessed using changes in strength and body composition, levels of independence, dietary

knowledge and intakes, blood pressure, the total-to-high-density lipoprotein cholesterol ratio, bone

mineral density, and fasting glucose concentrations.
2-72 Health and Function

Field-Initiated Projects (FIPs)

Illinois

Development of an Intelligent Therapeutic Stretching Device for

Stroke Patients

Rehabilitation Institute of Chicago

345 East Superior Street, Room 1406

Chicago, IL 60611-4496

l-zhang@northwestern.edu

http://p3.smpp.northwestern.edu

Principal Investigator: Li-Qun Zhang, PhD

Public Contact: 312/238-4767; Fax: 312/238-2208

Project Number: H133G010066

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $148,822; FY 02 $148, 571

Abstract: This project develops a useful and practical ankle stretching device with advanced control

features that can be used by therapists and individuals who are post-stroke. Project activities include:

(1) developing a portable stretching device with intelligent control to stretch an ankle joint with

spasticity/contracture safely and repeatedly throughout the ankle range of motion (ROM) to reduce

spasticity/contracture, (2) evaluating the outcome quantitatively, and (3) comparing it with a continuous passive motion (CPM) machine. The device stretches the joint safely to extreme dorsi- and

plantar-flexion until a specified peak resistance torque is reached with precise control of stretching

velocity, based on resistance torque. Outcome is evaluated quantitatively in multiple aspects during

each of the stretching sessions. Changes in joint intrinsic properties are quantified by the passive

ROM, joint stiffness, viscous damping, and energy loss during the controlled passive stretching,

while the reflex changes are quantified by reflex gain and threshold. Functional changes induced by

the stretching are evaluated through the active ROM, plantar and dorsi-flexor co-contraction, and

foot-drop and walking speed during locomotion. In general, similar stretching devices can be developed to treat spastic joints other than the ankle and other neurologically impaired populations

troubled by spasticity/contracture. Finally, the stretching device is portable and has a relatively low

cost, making it convenient and economical for patients to use in a clinic or at home.
Health and Function 2-73

Field-Initiated Projects (FIPs)

Illinois

Development of a Pressure Ulcer Prevention Beliefs Instrument for

Persons with Spinal Cord Injury

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1436

Chicago, IL 60611-4496

rbking@northwestern.edu

Principal Investigator: Rosemarie B. King, PhD, RN

Public Contact: 312/908-8038; Fax: 312/503-5868

Project Number: H133G010058

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $148,101; FY 02 $149,996

Abstract: This project develops a measure that clinicians can use to assess the health beliefs of

persons with SCI regarding pressure ulcer (PU) prevention. The goals of the study are to: (1) develop an instrument to measure PU-prevention health beliefs that is reliable by collecting qualitative

data on perceptions about PU risk and seriousness, barriers to and benefits of preventive skin care,

and confidence in performing skin care; (2) develop a health beliefs instrument that is structurally

and theoretically valid; and (3) describe the pressure ulcer prevention beliefs of 375 persons with

recent or chronic SCI. Findings facilitate the development of health belief-based interventions that

address the multifactorial basis of risk for PU development. The addition of skin care health beliefs

to risk prediction instruments should increase the predictive power of such instruments.
2-74 Health and Function

Field-Initiated Projects (FIPs)

Maryland

Consumers’ Participation in Nursing Home Decision-making

Preferences and Perceptions

University of Maryland/Baltimore County

Policy Sciences Graduate Program

1000 Hilltop Circle

Baltimore, MD 21250

nanmille@umbc.edu

Principal Investigator: Nancy Miller, PhD

Public Contact: 410/455-3889; Fax: 410/455-1172

Project Number: H133G000068

Start Date: June 1, 2000

Length: 36 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $149,556; FY 01 $149,067; FY 02 $147,015

Abstract: This project examines decision-making about long-term care, as it relates to institutional

admission and discharge, viewing these decisions as having a critical influence on the opportunities

individuals have to attain valued long-term care goals. The study explores the decision-making

process of a nursing home population for which little information is available—working-age residents. Current research has focused on acute care for the most part; limited attention has been given

to consumer values and preferences in long-term care and the role, if any, these play in long-term

care decisions. Specific objectives and analyses include describing the level of consumer participation in the nursing home admission decision and describing the perceived adequacy of participation

in decision-making by consumers.
Health and Function 2-75

Field-Initiated Projects (FIPs)

Maryland

Increasing States’ Allocations of Medicaid Dollars to CommunityBased Care: Where Might Policy Intervene?

University of Maryland/Baltimore County

Policy Sciences Graduate Program

1000 Hilltop Circle

Baltimore, MD 21250-0001

nanmille@umbc.edu

Principal Investigator: Nancy Miller, PhD

Public Contact: 410/455-3889; Fax: 410/455-1172

Project Number: H133G010023

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 01 $148,706; FY 02 $130,519

Abstract: This research project features two related studies. First, the project examines factors that

influence community-based care expenditures for different subgroups of individuals with disabilities. Analyses focus on Medicaid 1915(c) waiver expenditures, examining the effect of a set of statelevel variables shown in previous work to be related to state fiscal effort, on expenditures for five

segments of the population: the frail elderly, individuals with developmental disabilities, younger

people with disabilities, persons with AIDS, and children with a variety of disabling conditions.

Research identifies the extent to which variables amenable to policy influence are either shared, or

differ across segments of the population with disabilities. Second, the project examines the relationship between increased use of 1915(c) waiver services and total, as well as institutional, long-term

care expenditures. Research examines the extent to which states can redirect institutional dollars to

community-based care without increasing total long-term care expenditures. Community-based care

services are, on average, noticeably less costly than institutional services; if the site of care is the

community rather than the institution more individuals are able to access care. Providing greater

access to long-term care in preferred community settings, without increasing total long-term care

costs, is viewed as evidence of cost effectiveness. Cost concerns have repeatedly been raised in

discussions to expand community-based care. By focusing on Medicaid 1915(c) waiver programs,

this project provides important cost effectiveness information not presently available.
2-76 Health and Function

Field-Initiated Projects (FIPs)

Maryland

Bilateral Arm Training in Patients with Chronic Hemiparesis

University of Maryland

100 Penn Street

Baltimore, MD 21201-1082

jwhitall@som.umaryland.edu

Principal Investigator: Jill Whitall, PhD

Public Contact: 410/706-0764; Fax: 410/706-6387

Project Number: H133G010111

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $148,579; FY 02 $148,742

Abstract: This project uses a randomized controlled study to test the validity of low intensity

repetitive bilateral arm training with rhythmic auditory cuing to improve upper extremity (UE)

motor function. This training program is based on principles of motor learning and control. A longterm objective of this research program is to understand the principles and mechanisms underlying

UE stroke rehabilitation and to provide a scientific basis for planning treatments for stroke rehabilitation.
Health and Function 2-77

Field-Initiated Projects (FIPs)

Massachusetts

Development of Methods to Monitor Functional Tasks

Boston University

881 Commonwealth Avenue

Boston, MA 02215

sroy@bu.edu

Principal Investigator: Serge H. Roy, ScD

Public Contact: 617/358-0718; Fax: 617/353-5737

Project Number: H133G020108

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $150,000

Abstract: This project develops a method to identify functional activities based on combined surface-detected electromyographic (EMG) and accelerometer signals. This capability is currently

unavailable, and provides an ability to discriminate between various functional activities such as

feeding, grooming, dressing, ambulating, toileting, and transfers solely on the basis of information

from wearable biosensors. Self-report methods currently in use are subjective or are clinically based

and do not accurately portray a patient’s functional status throughout the day in their home or

community. Existing monitors rely solely on accelerometers to provide continuous activity monitoring in remote locations, but they are limited to general activity assessment. This method can be

combined with commercially available data loggers for a portable system that continuously and

unobtrusively monitors the functional abilities of a patient in their home or community. Such objective and quantitative information can improve the effectiveness of rehabilitation services by establishing realistic goals, monitoring home-based therapy, and establishing the need for transition to

other levels of care.
2-78 Health and Function

Field-Initiated Projects (FIPs)

Michigan

Repetitive Intensive Training Exercise: Effect on Upper Extremity

Motor Function in Spasticity

University of Michigan

Department of Physical Medicine and Rehabilitation

Wolverine Tower, Room 1056

3003 South State Street

Ann Arbor, MI 48109-0042

ehurvitz@umich.edu

Principal Investigator: Edward Hurvitz, MD

Public Contact: 734/936-7200; Fax: 734/936-6121

Project Number: H133G000058

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $149,854; FY 01 $149,993; FY 02 $149,970

Abstract: Using motor control testing techniques, this project studies the effect of a repetitive,

intensive training intervention on upper limb function. It investigates whether a program of repetitive, intensive training exercises designed to improve motor coordination leads to greater improvement in motor performance than either a group receiving a more typical frequency of intervention or

a control group receiving a socialization intervention. A further goal is to determine if evidence

exists of carry-over once the intervention is terminated. The study includes 36 subjects between the

ages of 6 and 15 who have upper extremity spasticity of cerebral origin.
Health and Function 2-79

Field-Initiated Projects (FIPs)

Michigan

Functional Assessment and Treatment of Neurogenic Hypotension Due

to Spinal Cord Injury

Rehabilitation Institute of Michigan

Wayne State University

261 Mack Boulevard, Room 834

Detroit, MI 48201

enieshof@dmc.org

Principal Investigator: Edward Nieshoff, MD

Public Contact: 313/745-9733; Fax: 313/745-1063

Project Number: H133G020128

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $116,835

Abstract: This project characterizes hypotensive phenomena associated with SCI and evaluates the

effects of midodrine, an alpha-sympathomimetic medication, on them. Specifically, cardiovascular

autonomic insufficiency due to SCI is manifested by (1) orthostatic hypotension, which impedes

early rehabilitation efforts and causes subjective distress, and (2) exertional hypotension, which

contributes to pathological fatigue and limited exercise performance. Thus, two corresponding

protocols are employed to evaluate the effects of anti-hypotensive treatment with midodrine on each

impairment, using two methods of hemodynamic challenge: head-up tilt table testing is used to elicit

orthostatic hypotension, and arm-crank ergometry to elicit exertional hypotension. In each protocol,

a randomized crossover within-subjects design allows for comparison of the effects of three interventions (compression garments, midodrine 10mg, and placebo) on subjective and objective responses. Ability to tolerate head-up tilt is assessed by heart rate, blood pressure, and symptoms

during inclination; exercise tolerance is evaluated by oxygen consumption and perceived exertion in

addition to the latter. Similar cardiovascular autonomic insufficiency in non-paralyzed populations

responds dramatically to treatment with the midodrine, with increased ability to engage in physical

activity. This project is the first controlled trial of midodrine in SCI.
2-80 Health and Function

Field-Initiated Projects (FIPs)

Minnesota

Effect of Electrical Stimulation on Brain Reorganization in Subjects

with Stroke

University of Minnesota

MMC 388

Minneapolis, MN 55455-2070

carey007@umn.edu

Principal Investigator: James R. Carey, PhD

Public Contact: 612/626-2746; Fax: 612/625-7192

Project Number: H133G010077

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $149,995; FY 02 $149,993

Abstract: This project studies the effects of training finger movement control in subjects with

stroke using a finger movement tracking paradigm on manual skill and also on brain reorganization,

as measured by functional magnetic resonance imaging (fMRI). Although brain imaging studies

show evidence of brain reorganization in individuals who have recovered from stroke, these studies

have not examined the subjects before and after their rehabilitation. Electrical stimulation has been

found to be effective in helping recover hand function in many but not all individuals with stroke.

This project instructs subjects with stroke in aggressive (six hours per day) electrical stimulation

treatment to be done in their own home. Furthermore, it explores whether the sensory bombardment

that occurs centrally with electrical stimulation causes an expansion of cortical activity and whether

this might be the mechanism for improved manual control following treatment. Subjects with stroke

are assigned randomly to either an electrical stimulation group or a control group. Appropriate tests

of manual performance as well as brain imaging using a 4 Tesla magnet are conducted at pretest,

post-test, and follow-up. This research has the potential of uncovering important information on

recovery from stroke that invites many more studies in the future.
Health and Function 2-81

Field-Initiated Projects (FIPs)

Minnesota

Personalized Health Care for Individuals with Physical Disabilities:

Satisfaction with Services and Outcomes

University of Minnesota

Institute on Community Integration

111 Pattee Hall

150 Pillsbury Drive Southeast

Minneapolis, MN 55455-0223

abery001@umn.edu

Principal Investigator: Brian Abery, PhD

Public Contact: 612/625-5592; Fax: 612/624-9344

Project Number: H133G010064

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 01 $149,834; FY 02 $149,178

Abstract: This project demonstrates both the direct and indirect effects of the AXIS approach to

health care on the lives of adults with physical disabilities. AXIS Healthcare, a joint venture of

Sister Kenny Institute and Courage, Inc., was formed to bring knowledge of physical disability to

the application of managed care. When dealing with health issues, people with physical disabilities

often find themselves battling not only illness but also the health care system itself; this project

works in partnership with persons with physical disabilities to coordinate a high-quality, cost effective network of specialized services spanning the continuum of care. Over the course of the project,

the health outcomes and satisfaction levels of individuals with physical disabilities taking part in this

program are monitored on a regular basis. The health outcomes and satisfaction of a comparison

group of individuals receiving care through traditional plans is also followed during this time. The

project is conducted with the understanding that programs similar to this one are not likely to be

established on a wide-scale basis until it can be empirically demonstrated that such programs have a

significant impact on the quality of life of the people they serve. The project is a collaborative effort

of The University of Minnesota, Courage Inc., AXIS Healthcare, and The Metropolitan Center for

Independent Living in Minneapolis.
2-82 Health and Function

Field-Initiated Projects (FIPs)

Minnesota

Home-Based Tracking Training to Stimulate Neuroplasticity and

Improve Function in Stroke

University of Minnesota

MMC 388

Minneapolis, MN 55455-2070

carey007@umn.edu

Principal Investigator: James R. Carey, PhD, PT

Public Contact: 612/626-2746; Fax: 612/625-7192

Project Number: H133G020145

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $149,929

Abstract: This project examines: (1) whether home-based Joint Movement Tracking Training is

effective in promoting improved hand function and brain reorganization in subjects with chronic

stroke, and (2) whether the mechanism of any such improvement is learning-dependent or usedependent. Recent research has shown that repetitive efforts by subjects with chronic stroke using

their paretic hand at a finger movement tracking task produced significant improvements in hand

function and brain reorganization. The training technique requires patients to learn how to create

precision movements of the index finger to track target waveforms on a computer screen. This

project investigates whether home-based tracking treatment using a laptop computer and telecommunication technology can be as effective as earlier work with clinic-based treatment. Equally

important, this project determines whether it is the motor learning or the repetitive movement that

serves as the mechanism of improvement.
Health and Function 2-83

Field-Initiated Projects (FIPs)

New Hampshire

Developing and Evaluating an Interactive Tool to Support Literacy

Learning in Adolescents with Severe Speech and Physical Impairments

University of New Hampshire

62 College Road

Morrill Hall

Durham, NH 03824

karene@cisunix.unh.edu

Principal Investigator: Karen Erickson, PhD; David Koppenhaver, PhD, 507/933-7444

Public Contact: Karen Erickson, PhD, 603/966-8828; Fax: 603/966-9942

Project Number: H133G990501

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 99 $124,755; FY 00 $124,755; FY 01 $124,988; FY 02 (No-cost extension

through 6/30/2003)

Abstract: This project creates a web-based tool, the Adolescent Literacy Learning Link (ALLLink), which provides adolescents with Severe Speech and Physical Impairments (SSPI) with an

innovative, literary learning environment. ALL-Link features age-appropriate reading and writing

activities that are grounded in inclusive models of comprehension and composition that apply

equally to people with and without disabilities. Projected outcomes of ALL-Link development

include: (1) successful development and implementation of an innovative and interactive literacylearning web site for adolescents with SSPI and their teachers; (2) wide dissemination of the site and

parallel or related materials for classrooms without Internet access; and (3) project management that

efficiently provides target groups with increased access to and use of the web site, related materials,

and project findings.
2-84 Health and Function

Field-Initiated Projects (FIPs)

New Hampshire

Project PATH (Promoting Access, Transition, and Health)

University of New Hampshire

Recreation Management and Policy

Hewitt Hall, Room 105

Durham, NH 03824-3585

jrsable@cisunix.unh.edu

http://www.unh.edu/rmp/rmpfiles/path.htm

Principal Investigator: Janet Sable, PhD, 603/862-3401

Public Contact: Jill Gravink, 603/862-0070; Fax: 603/862-2722

Project Number: H133G000150

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $149,996; FY 01 $149,996; FY 02 $149,996

Abstract: This project performs a randomized, controlled trial of Project PATH (Promoting Access,

Transition, and Health), a community-based health promotion wellness program for people with new

spinal cord injuries (SCIs). This health-promoting program involves a variety of interventions

including wellness education, an individualized fitness program, recreation skill development with

family and friends, community accessibility and advocacy, and peer advising. Working in conjunction with consumers, family, friends, and health and rehabilitation professionals, Project PATH is

designed to empower people with new SCIs to make prudent and appropriate use of recreation and

leisure resources and in that way, to reduce the incidence and intensity of some the most prevalent

and destructive secondary conditions of SCI: e.g., pressure sores, upper respiratory and urinary tract

infections, and depression. The project is a coordinated effort among the University of New Hampshire, Northeast Passage, a group of private proprietary rehabilitation hospitals, a private, nonprofit

hospital, university-based research, and the New England Regional SCI Center.
Health and Function 2-85

Field-Initiated Projects (FIPs)

New Hampshire

Catecholaminergic Modulation of Working Memory in Traumatic

Brain Injury: An fMRI Study of the Effects of D2 Dopaminergic and

Alpha-2 Adrenergic Agonistics

Dartmouth College

DHMC

Department of Psychiatry

1 Medical Center Drive

Lebanon, NH 03756-0001

thomas.w.mcallister@dartmouth.edu

http://synapse.hitchcock.org

Principal Investigator: Thomas W. McAllister, MD, 603/650-5824

Public Contact: Patricia Shaw, 603/650-7552; Fax: 603/650-5842

Project Number: H133G000136

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $150,000; FY 01 $150,000; FY 02 $150,000

Abstract: This project determines the role of dopaminergic (DA) and alpha-2 adrenergic (A2A)

mechanisms in the memory deficits experienced after a TBI. Many of the 1-2 million individuals

who sustain a mild-to-moderate TBI (MMTBI) each year suffer deficits in working memory in the

first several weeks after the injury. This project uses neurocognitive and fMRI measures in two

populations, one with normal WM (healthy controls), and one with low working memory capacity

(individuals with MMTBI) to: (1) characterize baseline working memory deficits in two domains

(verbal and spatial) within one month of MMTBI, and (2) test and compare the ability of DA and

A2A agonists to ameliorate working memory deficits in the two domains within one month of

MMTBI. The study predicts that relative to healthy controls, individuals with MMTBI have greater

deficits in verbal and spatial working memory, show greater improvement in working memory while

on D2 and A2A agonists, and that DA and A2A agonists result in different profiles and degrees of

working memory improvement. Furthermore, relative to controls, the fMRI of individuals with

MMTBI should show less activation associated with low and high working memory load conditions,

should normalize when acquired while on DA and A2A agonists, and should show selective prefrontal increased activation in response to increased working memory load.
2-86 Health and Function

Field-Initiated Projects (FIPs)

New York

Randomized Controlled Trial of Anti-Fatiguing Exercise to Improve

Function in Multiple Sclerosis Patients

State University of New York (SUNY) at Buffalo

Department of Occupational Therapy

515 Kimball Tower

Buffalo, NY 14214

nfisher@buffalo.edu

http://ot.buffalo.edu/rehabphys

Principal Investigator: Nadine M. Fisher, EdD

Public Contact: 716/829-3141, ext. 145; Fax: 716/829-3217

Project Number: H133G010132

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: The goals of this study are: (1) to measure the changes in fatigue that result from a simulated workday and the next morning (incomplete recovery and residual fatigue); and (2) to study the

effectiveness of a 16-week program of anti-fatiguing resistance exercises. Multiple Sclerosis (MS) is

a demyelinating disease of the central nervous system; the most common symptom of MS is a

generalized sense of fatigue and reduced function. Few studies have considered the role of exercise

as a treatment for fatigue in people with MS. Subjects with MS are randomly assigned an exercise

group and receive an individualized progressive resistance training program of anti-fatiguing exercises to perform three days per week in the lab or at home.
Health and Function 2-87

Field-Initiated Projects (FIPs)

New York

Acupuncture as an Adjunctive Treatment in Stroke Rehabilitation

Beth Israel Medical Center

Center for Health and Healing

245 Fifth Avenue, 2nd Floor

New York, NY 10016

sshiflet@chpnet.org

http://www.healthandhealingny.org

Principal Investigator: Samuel C. Shiflett, PhD, 646/935-2244

Public Contact: Fax: 646/935-2273

Project Number: H133G000120

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $149,556; FY 00 $149,343; FY 01 $149,655; FY 02 (No-cost extension

through 6/30/2003)

Abstract: This project designs and evaluates safe and efficacious ways acupuncture may be used to

benefit the functional recovery of survivors of stroke when used in addition to standard rehabilitation. The project directly addresses the medical, cognitive, and psychological sequelae of stroke, and

addresses which acupuncture points and model to use, when to start acupuncture, and the use of

electroacupuncture. The project also compares acupuncture with and without electrical stimulation

in stroke treatment. The aim of the study is to use rigorous research methods to determine: (1)

whether acupuncture has a beneficial effect on activities of daily living, motor and cognitive functioning, and quality of life in post-stroke survivors above and beyond standard rehabilitation; and (2)

if so, whether the length of time after stroke, before acupuncture is begun, affects the extent to

which acupuncture is effective, and optimal time to begin acupuncture therapy. In addition, it is

important to determine whether there is any benefit to initiating acupuncture treatment in stroke

survivors who are well past the subacute stage and who have apparently reached a plateau in their

recovery.
2-88 Health and Function

Field-Initiated Projects (FIPs)

New York

Community Reintegration and Quality of Life Following Traumatic

Brain Injury

Mount Sinai School of Medicine

One Gustave L. Levy Place, Box 1240

New York, NY 10029

marcel.dijkers@mssm.edu

Principal Investigator: Marcel Dijkers, PhD

Public Contact: 212/659-8587; Fax: 212/348-5901

Project Number: H133G990221

Start Date: July 1, 2000

Length: 12 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 00 $194,711; FY 01 $194,711; FY 02 (No-cost extension through 9/30/2003)

Abstract: This project increases understanding of community reintegration (CI) and quality of life

for people with TBI, and develops instruments that can be used in future research. CI refers to a

return to the mainstream of community life, and again becoming an active and contributing member

of one’s family and society. When people with TBI, their families, and professionals in rehabilitation discuss quality of life following TBI, they consider home and community roles and activities,

rather than the impairments or disabilities resulting from the injury. The best currently available

instrument, the Community Integration Questionnaire (CIQ) has serious limitations regarding the

measurement of all aspects of CI in a comprehensive, reliable, and sensitive manner. This project:

(1) produces a new version of the CIQ, and assesses its validity and reliability; (2) develops norms

for the new CIQ, for subgroups defined by age, gender, and racial/ethnic group; (3) creates a lifesatisfaction measure specific to people with TBI, and assesses its validity and reliability; (4) investigates the relationship between CI and subjective well-being; (5) describes the CI and quality of life

of TBI survivors, with a focus on severity of injury, age, gender, socioeconomic status, and racial

and ethnic group differences; and (6) disseminates the instruments and other results to people with

TBI and their families, professionals, policy-makers, and researchers.
Health and Function 2-89

Field-Initiated Projects (FIPs)

New York

The Impact of Managed Care on Rehabilitation Services and

Outcomes for Persons with Spinal Cord Injury

Mount Sinai School of Medicine

One Gustave Levy Place, Box 1240

New York, NY 10029

marcel.dijkers@mssm.edu

Principal Investigator: Marcel Dijkers, PhD

Public Contact: 212/659-8587; Fax: 212/348-5901

Project Number: H133G990220

Start Date: July 1, 2000

Length: 12 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 00 $168,769; FY 02 (No-cost extension through 6/30/2003)

Abstract: This project examines the impact of managed care on rehabilitation services and outcomes for people with spinal cord injury (SCI). The study analyzes demographic, medical, functional, community integration, life satisfaction, and service delivery data collected from Model

Systems projects to determine how managed care is altering the acute and rehabilitative management

of SCI and how it affects short- and long-term outcomes, such as functional status and community

integration. Objectives include: (1) describing the pathways of newly injured people with SCI

through the health care system, from injury to stable community residence: acute care, rehabilitation

care (including inpatient-acute, subacute, day hospital, and outpatient), home care, and readmissions

for complications; (2) assessing the impact of managed care on these pathways: determining whether

managed care patients differ from those with more traditional health insurance in terms of services

received (providers, services, durations); and (3) assessing the effect of various pathways on the

outcomes for this patient population at one and two years after injury in functional, medical, psychological, and health services utilization. The project team disseminates findings to consumers, managed care and other payer organizations, policy-makers, and SCI professionals using a variety of

mechanisms. Findings are expected to contribute to the redesign of the SCI Model Systems National

Database to make it correspond optimally to the organization of health and rehabilitative services in

the 21se:st century.
2-90 Health and Function

Field-Initiated Projects (FIPs)

New York

Interventions to Improve Memory in Patients with Multiple Sclerosis

State University at Stony Brook

Health Science Center T12-020

Department of Neurology

Stony Brook, NY 11784-8121

Principal Investigator: Lauren B. Krupp, MD, 631/444-8119

Public Contact: Pat Melville, RN, 631/444-8164; Fax: 631/444-6325

Project Number: H133G990058

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 99 $147,304; FY 00 $147,816; FY 01 $148,329; FY 02 (No-cost extension

through 6/30/03)

Abstract: This project: (1) tests the efficacy of interventions, specifically targeting cognitive functioning, in patients with Multiple Sclerosis (MS); and (2) uses a novel outcome measurement that

may be more sensitive and ecologically valid than existing measurements. The experiments determine the efficacy of donepezil therapy and glucose administration for enhancing memory functioning, two interventions that are extremely well-tolerated and have been demonstrated to be effective

for improving memory and other aspects of cognitive functioning in several populations. Verbal

memory is the most common area of impairment in people with MS, and therefore a verbal memory

task is the primary outcome measure. Secondary outcome measures assessing other aspects of

cognitive function (i.e., nonverbal memory, conceptual thinking, processing speed) may also be

improved with intervention.
Health and Function 2-91

Field-Initiated Projects (FIPs)

New York

Development of Valid and Reliable Measures of Postural Stability

Helen Hayes Hospital

Route 9W

West Haverstraw, NY 10993

crthhh@mindspring.com

Principal Investigator: Stephen H. Sprigle, PhD

Public Contact: 845/786-4806; Fax: 845/786-4875

Project Number: H133G010024

Start Date: October 1, 2001

Length: 24 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $139,612; FY 02 $142,970

Abstract: This project validates four clinical measures of seated stability. An unresolved biomechanics problem for wheelchair users is maintaining functional trunk stability during upper extremity (UE) movement while achieving functional trunk mobility, when needed. Trunk stability is

provided by the wheelchair backrest, but this trunk support is in direct conflict with trunk mobility.

Back or trunk supports, which envelop the trunk, also restrict mobility. For wheelchair users, balancing sufficient trunk support with adequate trunk mobility has important functional and medical

consequences. Better understanding of the posture-function relationship is needed to permit seated

stability during activities of daily living while not hindering function by restricting trunk mobility.

Assessing postural stability should be integral to every seating evaluation; however, clinicians have

not been provided with valid measures of stability. This project tests three measures of stability

previously defined in the literature (functional reach, sitting balance, and reach area) and introduces

a fourth measure (bilateral reach). The predictive validity of all four measures is determined by

correlating the respective measurements to results of a series of functional tasks. Concurrent validity

is determined by correlating the results of the four clinical stability measures to each other. In

addition, the measures undergo reliability testing. The outcome of this project is clinical measures of

functional postural stability that have construct, concurrent, and predictive validity.
2-92 Health and Function

Field-Initiated Projects (FIPs)

Ohio

Empowering Persons with a Spinal Cord Injury Through a Shared

Decision-Making Program

Case Western Reserve University

2500 Metrohealth Drive

Cleveland, OH 44109

pkmurray@metrohealth.org

Principal Investigator: Patrick Murray, MD, 216/778-3901

Public Contact: Mary Jo Roach, PhD, Project Manager, 216/778-8781; Fax: 216/778-3945

Project Number: H133G020029

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $149,759

Abstract: This project systematically summarizes information concerning the various aspects of

bladder management and SCI and prepares it in a format that allows persons with SCI to make more

informed decisions about this issue. A panel of clinicians, experts in the care of persons with SCI,

meet to develop a table of estimates concerning costs, complications, long-term risks, and effects on

other aspects of care for each of the four commonly used approaches to bladder management and

two emerging technologies. This panel is supported by a team that abstracts relevant literature and

assists with decision analysis, when needed. These clinical estimates are shared with three focus

groups of persons with SCI. The focus groups discuss the clinical findings and add relevant information about how the clinical aspects integrate with personal, vocational, and preference issues for

individuals with SCI. The investigators use these two sets of information to develop a script for a

multimedia presentation tailored to address the specifics of any individual’s clinical situation. The

multimedia presentation is evaluated for its ability to enhance informed decisions among persons

with SCI concerning bladder management.
Health and Function 2-93

Field-Initiated Projects (FIPs)

Ohio

The Physiologic Basis of Functional Electrical Stimulation on Muscle

Atrophy in Acute Spinal Cord Injury

Ohio State University

Physical Medicine and Rehabilitation

Dodd Hall

480 West Ninth Street

Columbus, OH 43210

mysiw.1@osu.edu

Principal Investigator: W. Jerry Mysiw, MD

Public Contact: 614/293-3801; Fax: 614/293-3809

Project Number: H133G80100

Start Date: May 1, 1998

Length: 36 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 98 $125,000; FY 99 $125,000; FY 00 $125,000; FY 01 (No-cost extension

through 4/30/02)

Abstract: This study characterizes the changes in muscle mass, morphology, and histochemistry in

the first 6-7 months following acute SCI and explores the impact of early reinstitution of muscle

contraction on prevention of musculoskeletal atrophy. Muscle contractions are accomplished

through the application of functional electrical stimulation (FES) induced cycle ergometry, but this

study is not designed to develop FES technology. Rather it leads to a better understanding of the

effect of FES-induced isotonic muscle contraction with dynamic force on the musculoskeletal

changes known to occur after acute SCI. It also defines the dose-response relationship of FESinduced workloads on muscle mass and quality. Finally, the study begins to explore the mechanisms

for the observed changes through characterization of both systemic growth hormone and insulin-like

growth factors and local insulin-like growth factor changes over the six-month FES cycle ergometry

training program. A better understanding of the factors associated with the development of musculoskeletal atrophy occurring after acute spinal cord injury should lead to the development of better

rehabilitation and pharmacologic interventions directed at preventing these secondary impairments

of SCI.
2-94 Health and Function

Field-Initiated Projects (FIPs)

Oregon

Traumatic Brain Injury Rehabilitation: The Argentina Project

Oregon Health and Science University

School of Medicine

3181 Southwest Sam Jackson Park Road, L472

Portland, OR 97201-3098

chesnutr@ohsu.edu

http://www.ohsu.edu/som-ntrg

Principal Investigator: Randall Chesnut, MD

Public Contact: 503/494-3217; Fax: 503/494-7161

Project Number: H133G000154

Start Date: August 1, 2000

Length: 38 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $149,905; FY 01 $149,645; FY 02 $149,038

Abstract: This project compares a cohort of 200 TBI patients from Argentina with a matched

sample of 200 cases from the National TBI Model Systems Database. The Neurotrauma Group of

the Argentina Society of Intensive Medicine (SATI) has instituted, at a group of trauma hospitals in

Argentina, a level of TBI acute care equal to that found in U.S. hospitals. However, TBI patients in

Argentina are discharged from this excellent acute care to no further formal treatment. This affords

an opportunity to test two groups of TBI survivors who have equivalent levels of acute care but

radically different postacute rehabilitation care. In the U.S. sample, all cases have had at least

postacute, inpatient rehabilitation. Some have had outpatient treatment as well. Patients in both

groups are case-matched for major predictive variables and are compared with respect to short- and

long-term mortality and morbidity, to investigate the influence of postacute care on outcome. Additionally, the influence of acute care management practices on outcome is evaluated and regression

analysis is used to establish the major predictive variables in this patient population. This project is

the first to address integrated TBI management under the conditions of significant resource limitations that exist in many areas of the world.
Health and Function 2-95

Field-Initiated Projects (FIPs)

Pennsylvania

Opening the “Black Box”: The Content and Process of Learning in

Inpatient Traumatic Brain Injury Rehabilitation

Moss Rehabilitation Research Institute

1200 West Tabor Road

Philadelphia, PA 19141

thart@einstein.edu

Principal Investigator: Tessa Hart, PhD

Public Contact: 215/456-6544; Fax: 215/456-5926

Project Number: H133G020052

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $144,312

Abstract: This project to performs a systematic study of the content and process of learning events

and teaching strategies in inpatient TBI rehabilitation, and develops reliable tools by which they

may be characterized. Much of the content and process of rehabilitation for traumatic brain injury

(TBI) remains within a “black box” of unspecified therapy approaches and modalities. This project

uses a variety of innovative strategies to open the “black box,” to collect and analyze data on content

and process variables for both qualitative and quantitative purposes. Following a Participatory

Action Research model, the project utilizes a Project Team composed of experienced clinicians in

the field of TBI rehabilitation. The Team uses converging task analysis methods including group

process, interviewing, and field observation to develop a systematic, hierarchically organized classification of learning events used in inpatient TBI rehabilitation, and a classification system and

operational definitions of key therapist behaviors in the areas of task setup, task guidance, and task

feedback/ reinforcement. Particular attention is devoted to aspects of content and process relevant to

errorless learning, on the assumption that this strategy will be particularly valuable to future research

efforts. The team is assisted throughout by distinguished consultants with expertise in TBI and

cognitive rehabilitation, errorless learning, and rehabilitation research methodology.
2-96 Health and Function

Field-Initiated Projects (FIPs)

Rhode Island

Shake It Up for Alcohol and Substance Use Reduction! Health

Promotion and Capacity Building for Persons with Traumatic Spinal

Cord Injuries

Brown University

Center for Alcohol and Addiction Studies

Box G-BH

Providence, RI 02912

pamela_block@brown.edu

Principal Investigator: Pamela Block, PhD

Public Contact: 401/444-1879; Fax: 401/444-1850

Project Number: H133G010094

Start Date: January 1, 2002

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $149,783; FY 02 $148,927

Abstract: Project Shake It Up provides individualized and self-directed supports in the areas of

physical activity, recreation, life skills, health promotion, and prevention, including alcohol and

substance use reduction, for people with SCI. The project attempts to motivate positive life changes

and build the capacities of individuals with SCI through the development of peer support networks

and self-advocacy. Project Shake It Up also builds the capacity of two local nonprofit organizations

controlled and staffed primarily by individuals with disabilities: Shake-A-Leg, Inc., whose focus is

recreation and rehabilitation, and PARI, a center for independent living. Project objectives include:

(1) developing a culturally competent training and recreation program, including a manual that

addresses independent living issues such as disability rights, self-advocacy, education, employment,

transportation, sexuality, alcohol and substance use, and health promotion; (2) implementing and

evaluating the Shake It Up program for health promotion, physical activity, and alcohol and substance use reduction; (3) establishing peer-support networks to provide long-term support for intervention participants; (4) increasing the capacity of Shake-A-Leg and PARI to promote alcohol and

substance use reduction through health promotion and empowerment; and (5) disseminating the

program nationwide by making the manual the Shake It Up model widely available.
Health and Function 2-97

Field-Initiated Projects (FIPs)

Texas

Health Promotion for Women Aging with Disability

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

Center for Research on Women with Disabilities

3440 Richmond Avenue, Suite B

Houston, TX 77046-3403

rhughes@bcm.tmc.edu

http://www.bcm.tmc.edu/crowd

Principal Investigator: Rosemary B. Hughes, PhD

Public Contact: Rosemary Hughes, PhD, 713/960-0505; Fax: 713/961-3555

Project Number: H133G000226

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $149,940; FY 01 $149,998; FY 02 $150,000

Abstract: This project studies whether an intervention to improve self-efficacy and connectedness

improves health-promoting behaviors, which is related to improved physical and psychological

health. The research is based on two hypotheses: First, regarding the effectiveness of the intervention: women aging with physical disabilities who participate in a health promotion workshop intervention report higher levels of connectedness and self-efficacy in disability management after the

intervention and at a three-month follow-up, than women aging with physical disabilities who do not

participate in the intervention; and second, regarding predictors of health outcomes and the mediating effect of health promoting behaviors: connectedness in social and intimate relationships and selfefficacy in disability management significantly predict health promoting behaviors, which predict

physical and psychological health outcomes among women aging with physical disabilities, when

severity of disability and socioeconomic status are controlled.
2-98 Health and Function

Field-Initiated Projects (FIPs)

Texas

Assessment of Social Communication Abilities Following Traumatic

Brain Injury

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund

Houston, TX 77030-3498

strucm@tirr.tmc.edu

http://www.braininjuryresearch.org

Principal Investigator: Margaret Struchen, PhD

Public Contact: 713/666-9550; Fax: 713/383-5695

Project Number: H133G010152

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 01 $149,657; FY 02 $146,203

Abstract: This project is guided by a model of social communication that includes cognitive components, awareness, the social environment, and receptive, processing, and expressive components.

Activities include: (1) adapting social skills measures used with other populations to test the receptive, processing, and expressive social communication abilities of persons with TBI and comparing

the results to those of a group of matched control subjects; (2) assessing the relationship between

social communication ability and functional outcome for persons with TBI and their family members; and (3) investigating the relationship between executive functioning abilities and social communication skills, in an effort to determine the cognitive functions underlying social skills impairment. The study is expected to result in a clinically feasible and meaningful way to assess social

communication abilities, which can be a guide to clinicians in developing empirically driven interventions to improve social skills.
Health and Function 2-99

Field-Initiated Projects (FIPs)

Wisconsin

Quantitative Study of Anterior and Posterior Walker Usage Dynamics

in Children with Cerebral Palsy

Marquette University

Orthopaedic and Rehabilitation Engineering Center

P.O. Box 1881

Milwaukee, WI 53201-1881

gerald.harris@marquette.edu

http://www.eng.mu.edu/rehab/orec.htm

Principal Investigator: Gerald F. Harris, PhD, PE, 414/288-0698

Public Contact: Deborah Epps, Project Administrator, 414/288-0696; Fax: 414/288-0713

Project Number: H133G010069

Start Date: November 1, 2001

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $149,995; FY 02 $149,991

Abstract: This study enables caregivers to make more informed decisions regarding proper walker

selection and follow-up by comparing the effects of anterior walkers versus the effects of posterior

walkers among ambulatory patients with spastic cerebral palsy. It also provides a quantitative foundation for improving future pediatric walker designs. A hallmark of this study is the acquisition of

functional performance data using standardized mobility test instruments. Each child entered into

the study is evaluated using the Gross Motor Function Measure (GMFM), in addition to the Pediatric Outcomes Data Collection Instrument (PODCI) at each stage of the study. The children also

undergo standardized spasticity testing with the Ashworth and Tardieu assessment scales. Final

statistical comparison/correlation of the quantitative (biomechanical) and functional assessment test

results is used to streamline the walker evaluation process and offer a more practical tool for assessment and walker prescription.
2-100 Health and Function

Field-Initiated Projects (FIPs)

Wisconsin

Enhanced Upper Limb Motor Control by Reduced Synergistic Muscle

Patterns and Spasticity After Chemodenervation

Medical College of Wisconsin

Physical Medicine and Rehabilitation

8701 Watertown Plank Road

Box 26509

Milwaukee, WI 53226

jmcguire@mcw.edu

Principal Investigator: John McGuire, MD, 414/805-7366

Public Contact:

Project Number: H133G020112

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $149,995

Abstract: This research project assesses the impact of chemodenervation treatment on motor control

in patients with spastic hemiparesis. Moreover, the project examines the neurophysiological mechanisms of improved motor control following chemodenervation treatment by utilizing state-of-the-art

biomechanical analyses of motor abilities in combination with clinical measurements and consumer

feedback related to patient-specific goals. The research targets hemiparetic stroke patients with

functional limitations attributed to spasticity. The study identifies changes in spasticity, limb synergy, and functional reaching tasks using clinical and biomechanical measurements. This project

aims to improve chemodenervation techniques through the knowledge imparted by the research.
Health and Function 2-101

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Maryland

Web-Based Telerehabilitation for Home Assessment and Monitoring

AnthroTronix, Inc.

387 Technology Drive

College Park, MD 20742-0001

abrisben@anthrotronix.com

http://www.anthrotronix.com

Principal Investigator: Amy Brisben, PhD

Public Contact: 301/405-0156; Fax: 301/314-0156

Project Number: H133S020046

Start Date: September 20, 2002

Length: 6 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $75,000

Abstract: This project develops CosmoWeb, a therapy home monitoring and teleassessment system.

Children with disabilities perform physical and occupational therapeutic exercises while playing

interactive games featuring CosmoBot, a virtual-reality robot. The therapist remotely monitors

prescribed exercises embedded in the games by viewing data that are automatically recorded during

home therapy sessions. CosmoWeb consists of software for remote therapist/patient communication

and a child-friendly computer interface system, Mission Control, designed to interact with

CosmoBot’s games. Mission Control consists of devices that record upper-extremity movements and

actions the child makes to interact with CosmoBot’s games. In the course of playing these games

using body movement, or gestural, interfaces, the child carries out exercises designed to meet his or

her therapeutic goals.
2-102 Health and Function

Small Business Innovative Research (SBIR), Phase I

Oregon

An Innovative Dialysis Regeneration Cartridge for Portable

Hemodialysis

Chemica Technologies, Inc.

325 Southwest Cyber Drive

Bend, OR 97702-1076

taku@chemica.com

http://www.chemica.com

Principal Investigator: Takuji Tsukamoto, PhD

Public Contact: 541/385-0355; Fax: 541/385-0390

Project Number: H133S020011

Start Date: November 4, 2002

Length: 6 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $75,000

Abstract: This project develops an innovative portable dialyzer that uses a highly effective dialysate

regeneration cartridge to remove uremic toxins from dialysate. This involves immobilizing urease

onto a novel ion-selective fiber, which also acts as an adsorbent for ammonium and other uremic

toxins. Many end-stage renal disease (ESRD) patients are severely limited in the mobility and

freedom of their life due to the time and effort of having life-sustaining hemodialysis treatment at

hospitals. This device which would greatly improve the quality of life of ESRD patients and their

families by allowing for effective and comfortable treatment at home, or even at work or school.

The project objectives are: (1) to prepare optimally functionalized fiber for immobilization of urease

and adsorption of uremic toxins; (2) to prepare and characterize ion-selective, urease-immobilized

fiber; and (3) to determine the capacity of the ion-selective, urease immobilized fiber to eliminate

urea and other uremic toxins from dialysate, while maintaining dialysate ion homeostasis.
Health and Function 2-103

Small Business Innovative Research (SBIR), Phase I

Virginia

Automated Telephone Survey with Speech Recognition

Adherence Technologies Corporation

9856 Natick Road

Burke, VA 22015-2931

aletzt@adherence.com

http://www.adherence.com

Principal Investigator: Alan M. Letzt

Public Contact: 703/978-7197; Fax: 703/978-8932

Project Number: H133S020033

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $75,000

Abstract: This project develops and tests the feasibility of a system that automates the administration and scoring of the Medical Outcomes Study Short-Form 36 (SF-36) surveys. The SF-36 measures patients’ functioning and well being, and thus addresses the potential of individuals with

kidney failure to live independently and contribute to the paid workforce. With this approach: (1)

patients who have difficulty completing questionnaires because of low vision or low literacy are able

to complete the SF-36 by telephone, unaided, and (2) patient data are available to the social workers,

nurses, therapists, and physicians on a secure web site.
Technology for Access and Function

Rehabilitation, biomedical engineering, and assistive technology research has

produced results that have helped people with disabilities to achieve and maintain

maximum physical function, live in their own homes, attain gainful employment, and

participate in and contribute to society. NIDRR’s research addresses a broad range of

technology, including systems of public technology, such as telecommunications and

the built environment and orphan technology for individuals. The research program

also encourages universal design practices.

Contents

Rehabilitation Engineering Research Centers (RERCs) ...................................................................... 3

Disability and Rehabilitation Research Projects ................................................................................ 25

Field-Initiated Projects (FIPs) ............................................................................................................ 36

Small Business Innovative Research (SBIR), Phase I........................................................................ 64

Small Business Innovative Research (SBIR), Phase II ...................................................................... 90

Technology for Access and Function 3-3

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

California

Technologies for Children with Orthopedic Disabilities

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7503 Bonita Street

Bonita Hall

Downey, CA 90242

info@ranchorep.org

http://www.ranchorep.org

Principal Investigator: Donald McNeal, PhD; Sam Landsberger, ScD

Public Contact: Juan Garibay, 562/401-7994 (V); Fax: 562/803-6117

Project Number: H133E003001

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $650,000; FY 01 $760,000; FY 02 $915,172

Abstract: The goal of this RERC is to improve the lives of children with orthopedic disabilities.

Activities include: (1) conducting research to advance the state of knowledge; (2) disseminating this

information to children and their parents, clinicians, and research investigators; (3) developing and

testing prototype devices that are useful and efficacious; (4) transferring prototypes that have proven

value to the marketplace; and (5) educating engineering students about the special needs of children

with orthopedic disabilities. The research and development program is focused on three of the most

important life activities of children: manipulation, mobility, and play and recreation. Three projects

address the manipulation needs of children with upper limb deficiencies; one documents current

fitting practices of children’s prosthetic clinics throughout North America, while a second develops

improved elbows and prehensors for young children. A third project adds a power assist to the

mobile arm support, a product developed and commercialized during the current grant period. The

mobility projects address the needs of children with cerebral palsy, spinal bifida, SCI, muscle disease, and other chronic conditions that affect the child’s ability to ambulate. The RERC develops

lightweight orthotic components, evaluates the effectiveness of functional electrical stimulation to

correct gait abnormalities in children with cerebral palsy, and determines the appropriate time to

provide children with wheeled mobility. The RERC program conducts clinical trials at Rancho Los

Amigos National Rehabilitation Center, Shriners Hospital LA, and Children’s Hospital LA. This

project participates in the NIDRR Scholars program, providing motivated undergraduates with

internship experience in disability research.
3-4 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

California

RERC on Spinal Cord Injury: Keep Moving: Technologies to Enhance

Mobility and Function for Individuals with Spinal Cord Injury

Los Amigos Research and Education Institute, Inc. (LAREI)

P.O. Box 3500

Downey, CA 90242

sam@ranchorep.org; rwaters@dhs.co.la.ca.us

http://www.larei.org

Principal Investigator: Samuel Landsburger, ScD; Robert Waters, MD, 562/401- 7994; 562/401-

7161

Public Contact: Julia LaPlount, 562/401-8111; Fax: 562/803-5569

Project Number: H133E020732

Start Date: November 1, 2002

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $899,974

Abstract: This RERC improves the lives of individuals with SCI by promoting their health, safety,

independence, and active engagement in daily activities. Activities include: (1) monitoring trends

and evolving product concepts that represent future directions for technologies in SCI, (2) conducting research to advance the state of knowledge, (3) disseminating the information to the population,

(4) developing and testing prototype devices that are useful and effective and transferring them to

the marketplace, (5) advancing employment opportunities for individuals with SCI, and (6) developing ways to expand research capacity in the field of SCI. The R&D program is focused on a key

issue for individuals with SCI, the need to maintain mobility for as long as possible in order to

enhance independent function. A survey of the user population determines where areas of greatest

need exist. An active Mobile Arm Support for adults allows those with limited arm function greater

independence. The shoulder- preserving wheelchair, gait training robotic assist device, and adaptive

exercise equipment are all specifically geared to preserve or enhance mobility in individuals with

SCI. A project on optimized wheelchair suspension keeps people mobile by increasing comfort and

reducing tissue loading.
Technology for Access and Function 3-5

Rehabilitation Engineering Research Centers (RERCs)

California

Smith-Kettlewell Rehabilitation Engineering Research Center

Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

rerc@ski.org

http://www.ski.org/Rehab

Principal Investigator: John A. Brabyn, PhD, 415/345-2110

Public Contact: Deborah Gilden, PhD, 415/345-2000; Fax: 415/345-8455

Project Number: H133E001002

Start Date: August 1, 2000

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $650,000; FY 01 $650,000; FY 02 $650,000

Abstract: This RERC conducts research and development for persons who are blind or who have

visual impairments. For infants, the project explores a new objective means of identifying and

differentiating vision and cognitive impairments using visually-evoked potentials (VEPs), facilitating the design of optimal rehabilitation plans for each child. For individuals who have co-existing

disabilities (in addition to blindness or a visual impairment), the project explores new solutions for

wheelchair travel and various technologies for wayfinding. It also investigates independent travel

technology for those with combined visual and cognitive impairments. For the older age group, the

project explores practical tools allowing lay personnel to screen and assess visual impairments

affecting problems unique to this age group, so they can be identified and referred to appropriate

clinical or rehabilitation specialists quickly. For consumers who are deaf-blind, the project develops

a new generation of communication devices to expand the functions performed by existing products.

It also explores novel approaches to graphics access by persons who are blind or who are deafblind, using virtual reality, sonification, and force feedback technologies. An innovative program of

vocational and daily living technology development includes intensive interaction with service

providers and applications of computer vision.
3-6 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

District of Columbia

Rehabilitation Engineering Research Center on Hearing Enhancement

Gallaudet University

Division of Audiology and Speech-Language Pathology

Kendall Greene

800 Florida Avenue Northeast

Washington, DC 20002

info@hearingresearch.org

http://www.hearingresearch.org

Principal Investigator: Matthew H. Bakke, PhD, 202/651-5335

Public Contact: Lois O’Neil, Dissemination Coordinator, 718/350-3203 (V/TTY); Fax: 718/899-

3433

Project Number: H133E010107

Start Date: August 1, 1998

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $900,000; FY 02 $900,000

Abstract: This RERC develops and evaluates technology to accommodate the needs of people with

hearing loss, and disseminates related information in a form that is understandable to consumers,

service providers, employers, and community leaders. These goals are accomplished by: (1) developing and evaluating improved, cost-effective technological aids for each of the target populations

identified; (2) developing and evaluating instrumentation for detecting hearing loss at an early age;

(3) providing improved access to modern telecommunications; (4) developing and evaluating specialized technology for community, home, and work environments; and (5) pursuing an active

program of dissemination and training to ensure effective utilization of AT. This project participates

in the NIDRR Scholars program, providing motivated undergraduates with internship experience in

disability research.
Technology for Access and Function 3-7

Rehabilitation Engineering Research Centers (RERCs)

District of Columbia

Rehabilitation Engineering Research Center on Telerehabilitation

MedStar Research Institute

National Rehabilitation Hospital

102 Irving Street Northwest

Washington, DC 20010

michael.j.rosen@medstar.net

http://www.telerehab-nrh.org

Principal Investigator: Michael Rosen, PhD

Public Contact: Donal Lauderdale, 202/877-1554; Fax: 202/723-0628

Project Number: H133E990007

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $890,000; FY 99 $950,000; FY 00 $950,000; FY 01 $950,000; FY 02

$950,000

Other funding: FY 01 $1,040,000 (Assistive Technology Research Center, U.S. Army Medical and

Material Command)

Abstract: This RERC conducts research on various models of delivering rehabilitation services at a

distance: telerehabilitation. Its development activities focus on exploiting promising technology to

benefit people with disabilities. Research projects encompass the areas of: Telehomecare—

telesupport to caregivers of stroke victims; Telecoaching—remote jobsite coaching of persons with

mental disabilities; Telehealth pain management—psychological intervention at a distance; and

Behavioral Virtual Reality—investigation and training of social and attending behaviors using

virtual environment technology. Further research efforts explore integrating telerehabilitation into

today’s health care delivery system and finding effective means for extending rehabilitation services

to the peoples of the Pacific Rim. The center is also engaged in development projects focusing on

Telemonitoring, passive sensing of functional performance and health parameters using unobtrusive

instrumentation; HomeTelerehab, interactive systems for remote delivery of therapy, assessment,

teaching, and demonstration at home; and Teleplay, therapeutic play, including embedded

teleassessment for children with disabilities. The Center establishes the following National Resource

activities: (1) a Home Care and Telerehabilitation Technology Center; (2) a Home Care and

Telerehab Education/Training Center; and (3) a Virtual Library on Telerehabilitation that serves as

the focal point for information dissemination on telerehab-germane practice, policy, and technology.

The work of the Center spans three institutions: The National Rehabilitation Hospital, The Catholic

University of America, and Sister Kenney Rehabilitation Services.
3-8 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

Florida

Rehabilitation Engineering Research Center on Technology for

Successful Aging (RERC-Tech-Aging)

University of Florida

596 Museum Road

Gainesville, FL 32610

wmann@hp.ufl.edu

http://www.rerc.ufl.edu

Principal Investigator: William C. Mann, PhD, 352/392-2617

Public Contact: Kathy Locklear, Information Coordinator, 352/392-2617 (V/TTY)

Project Number: H133E010106

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 01 $900,000; FY 02 $900,000

Abstract: The RERC-Tech-Aging conducts research, development, education, and information

dissemination work on technology for successful aging. Projects of the RERC focus on the closely

related areas of communications, home monitoring, and “smart” technologies. The technology

driving the focus for this RERC is developing rapidly and requires an understanding of current and

emerging technology areas, including wireless technology, computers, sensors, user interfaces,

control devices, and networking. Successful integration of this technology into products and systems

for older persons requires an understanding of their complex health, independence, and quality-oflife issues. The RERC-Tech-Aging tests currently available home monitoring products and demonstrates their effectiveness in relation to independence, quality of life, and health related costs. The

RERC-Tech-Aging also identifies needs and barriers to home monitoring and communication

technology, and addresses needs of special populations including rural-living, elders, and people

aging with disability. The RERC-Tech-Aging brings together national expertise to meet this challenge, including major universities, industry leaders working in this area, major aging or agingrelated organizations, major federal agencies that relate to funding or services in this area, other

NIDRR-funded RERCs and RRTCs, and service-related organizations that assist in identifying study

participants.
Technology for Access and Function 3-9

Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Mobile Wireless

Technologies for Persons with Disabilities

Georgia Centers for Advanced Telecommunications Technology (GCATT)

Georgia Institute of Technology

250 - 14th Street NW

Atlanta, GA 30318

rerc@gcatt.gatech.edu

http://www.wirelessrerc.org

Principal Investigator: Helena Mitchell, PhD; Michael Jones, PhD, Shepherd Center; John Peifer,

Georgia Tech, 404/894-0058 (Mitchell); 404/352-2020 (Jones); 404/894-7028 (Peifer)

Public Contact: Khadedra Paschal, 404/385-4075; Fax: 404/894-1445

Project Number: H133E010804

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $1,000,000; FY 02 $1,000,000

Abstract: This RERC develops appropriate and effective applications of wireless technologies that

enhance the independence of people with disabilities. With an overall goal of promoting independence and autonomy of people with disabilities, the RERC has two primary aims: (1) ensure equitable access to mobile wireless products and services by people with disabilities of all ages and

abilities; and (2) investigate promising applications of mobile wireless technologies in support of

employment, independent living, and community integration of people with disabilities. To accomplish these aims, the RERC is organized into three main sections: The Research Section investigates

needs, policies, and promising applications of mobile wireless technologies to promote independence. Research initiatives include assessment of user needs, evaluation of emerging technologies,

and policy initiatives that influence the practices, policies, and regulations that affect accessibility of

wireless technologies. The Development Section includes projects that address universal access,

investigation of new applications of wireless technologies, and innovative design solutions to support independent living of people with disabilities. The Training and Dissemination Section promotes the synthesis of new knowledge into practice.
3-10 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Workplace

Accommodations

Georgia Institute of Technology

Center for Assistive Technology & Environmental Access

490 10th Street, NW

Atlanta, GA 30318

karen.milchus@catea.org

Principal Investigator: Karen Milchus; Jon Sanford, 404/894-0393

Public Contact: Karen Milchus, 404/894-0393; Fax: 404/894-9320

Project Number: H133E020720

Start Date: November 1, 2002

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $899,997

Abstract: This RERC identifies, designs, and develops devices and systems to enhance the workplace productivity of people with disabilities. Universal design is a primary focus of the Center—

making the design of products and environments usable by all workers to the greatest extent possible, without the need for adaptation or specialized design. The RERC’s research projects evaluate

existing workplace products and services and determine areas where further product development is

needed. The Center also studies archival materials to identify factors that contribute to successful or

unsuccessful outcomes, and analyzes policies and practices that may influence the nature and availability of workplace accommodations for persons with disabilities. The RERC’s development

activities focus on Remote Services and Universal Design in the Workplace. The Remote Services

projects investigate ways that remote technologies such as videoconferencing and telework can be

used to facilitate employment and provide technical support services to people with disabilities. The

Universal Design projects work with manufacturers to develop new generations of universally

designed and accessible products. Digital human modeling tools developed by the project provide

visualizations of products or systems with human interaction and movement and reduce the need for

preliminary physical prototypes. Products are developed for workers in office, manufacturing, retail/

sales, service industry, and other environments. Finally, training, technical assistance, and dissemination activities on workplace accommodations and universal design promote the transfer of new

knowledge into practice.
Technology for Access and Function 3-11

Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Prosthetics and

Orthotics

Northwestern University

Rehabilitation Engineering Research Program and Prosthetics Research Laboratory

345 East Superior Street, Room 1441

Chicago, IL 60611

reiu@northwestern.edu; d-childress@northwestern.edu

http://www.repoc.northwestern.edu

Principal Investigator: Dudley S. Childress, PhD, 312/238-6500

Public Contact: Resource Unit Help Line, 312/238-6524 (V); 312/238-6530 (TTY); Fax: 312/238-

6510

Project Number: H133E980023

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $900,000; FY 99 $900,000; FY 00 $900,000; FY 01 $900,000; FY 02

$900,000

Abstract: This RERC studies human performance as assisted by prosthetic and orthotic systems

with the aim of engineering improved prostheses and orthoses through deeper scientific understanding of their function. Research and development activities include: (1) development of automated

alignment methods for prostheses and orthoses, based on characterization of foot rocker shape

during walking; (2) investigations of shock absorption properties of the human locomotor system

and of prosthetic/orthotic systems; (3) mechanical considerations for improved crutch ambulation;

(4) studies of standard human walking; (5) determination of prosthetic foot roll-over shapes and

other characterizations; (6) examination of the effects of shoes on kinematic and kinetic parameters

of gait; (7) development of a portable, real-time, 3-D gait evaluation system (3-D Direct Ultrasound

Ranging System) that is able to provide estimates of walking quality (outcomes) using a simple

technology; (8) development of a computer- based visualization aid that displays prosthetic arms on

the human body before the arms are fabricated, to assist with decision making and fitting; (9) study

of factors affecting reach when using a trans-humeral prosthesis; (10) development of humeral

rotators, particularly for persons with bilateral trans-humeral limb loss; (11) advancement of design

of prosthetic and orthotic (P & O) components and systems to technology transfer and utilization;

(12) development and delivery of validated data- gathering instruments and a prototype database for

collection, storage, and processing short and long-term information concerning outcomes of P & O

fitting; (13) collaboration with the RERC on Land Mines and others engaged in related research;

(14) graduate education (including persons with disability) in biomedical engineering, concentrating

in prosthetics and orthotics; (15) publication of research work in scholarly journals; presentations at

conferences; and interaction with consumers, clinicians, engineers, scientists, and the general public

through a quarterly newsletter, telephone, Internet, and through personal meetings.
3-12 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center: Improved Technology

Access for Land Mine Survivors

Center for International Rehabilitation

351 East Huron, Second Floor Annex

Chicago, IL 60611

h-casanova@nwu.edu

http://www.cirnetwork.org

Principal Investigator: William Kennedy Smith, MD; Dudley S. Childress, PhD

Public Contact: Hector Cassanova, Project Coordinator, 312/926-0030; Fax: 312/926-7662

Project Number: H133E980031

Start Date: November 1, 1998

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 98 $850,000; FY 99 $850,000; FY 00 $850,000; FY 01 $850,000; FY 02

$850,000

Abstract: This RERC is active in research, development, and demonstration; consumer surveys;

education and training; utilization activities; technical assistance; and dissemination relating to

improved technology access for land mine survivors. To accomplish these activities, the project: (1)

maintains a database of rehabilitation service providers and assessments of current prosthetic technologies; (2) develops or adapts technical advances in the design, production, and delivery of appropriate assistive devices; (3) designs and disseminates education, training, management, and outcome

programs; (4) acts as a clearinghouse, providing researchers, educators, administrators, and funders

access to resources that have been developed to facilitate service delivery to amputees in the United

States and other countries; (5) disseminates information through an international newsletter and

international journals, telecommunications, presentations at international meetings, training programs, consultations, open discussions, and other types of communication; and (6) develops and

disseminates specific programs and products that address the needs of amputees and service providers in low-income countries where the vast majority of land mine survivors live. The RERC also

establishes an Advisory Council that includes consumers and practitioners.
Technology for Access and Function 3-13

Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Recreational

Technologies and Exercise Physiology Benefiting Persons with

Disabilities (RERC Rec-Tec)

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Suite 712

Chicago, IL 60608-6904

jrimmer@uic.edu

Principal Investigator: James H. Rimmer, PhD

Public Contact: 312/413-9651; Fax: 312/355-4058

Project Number: H133E020715

Start Date: November 1, 2002

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $899,536

Abstract: This program researches access to recreational opportunities and physical endurance of

people with disabilities, targeting four primary areas: (1) increased access to fitness and recreation

environments; (2) interventions to increase physical activity and recreation participation; (3) adherence strategies to reduce physical activity relapse and dropout rates; and (4) randomized clinical

trials to evaluate improvements in health and function. Research and development projects include:

(1) a comprehensive needs assessment that involves ongoing assessment of consumer needs as they

pertain to existing and emerging recreational and fitness technologies; (2) research on the use of

information technology and a newly designed environmental accessibility instrument for facilitating

access to recreational and fitness environments and promoting improved health and function; (3)

exercise physiology research on the use of “teleexercise” for promoting participation and for monitoring intensity and physiological/psychological outcomes of home-based exercise programs; (4)

development of broadly applicable modification kits for retrofitting cardiovascular exercise equipment and determining the efficacy of the new adaptations in improving fitness, development of

virtual exercise environments to promote exercise participation and adherence and to facilitate

monitoring of health outcomes; (5) development of technology to allow users adaptive control of

exercise machines; and (6) development of an online Rec-Tech solutions database on currently

available recreational and fitness technologies allowing the RERC to produce a rapid and sustained

impact by using information technology to make available solutions more accessible to consumers.

Two training projects promote capacity building for future recreation, fitness, exercise physiology,

engineering, and rehabilitation professionals, and two additional training projects support professional development.
3-14 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

Illinois

RERC on Rehabilitation Robotics and Telemanipulation: Machines

Assisting Recovery from Stroke (MARS)

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1406

Chicago, IL 60611-4496

w-rymer@northwestern.edu

Principal Investigator: W. Zev Rymer, MD, PhD

Public Contact: 312/238-3919; Fax: 312/908-2208

Project Number: H133E020724

Start Date: November 1, 2002

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $805,453

Abstract: This program centers its research and development on restoring function in hemispheric

stroke survivors. Four projects assess four different approaches that have the potential to improve

performance of the upper extremity, and one project attempts to restore locomotion. These projects

include: (1) Robotic Therapy for Force Training of the Upper Extremity in Chronic Hemiparetic

Stroke; (2) Gait Restoration in Hemiparetic Stroke Patients using Goal-Directed, Robotic-Assisted

Treadmill Training; (3) Development of a Robotic System with an Augmented Reality Interface for

Rehabilitation of Brain-Injured Individuals; (4) Rehabilitation of Finger Extension in Chronic

Hemiplegia; and (5) A Home-Based Telerehabilitation System for Improving Functional Hand and

Arm Movement Recovery Following Stroke. In addition to these projects, the RERC develops tools

for training research and development of a variety of client populations including medical students,

physician residents, graduate students in engineering and neuroscience, and allied health clinicians,

including physical and occupational therapists. The broad intent is to develop devices that assist the

therapist in providing rationally based, intensive, and long-duration treatments. This project is a

collaboration of the Rehabilitation Institute of Chicago, the National Rehabilitation Hospital in

Washington, D.C., Catholic University, the University of Illinois at Chicago, and the University of

California at Irvine.
Technology for Access and Function 3-15

Rehabilitation Engineering Research Centers (RERCs)

Michigan

Rehabilitation Engineering Research Center on Ergonomic Solutions

for Employment

University of Michigan

Center for Ergonomics

1205 Beal Avenue

Ann Arbor, MI 48109-1217

umrerc@umich.edu

http://umrerc.engin.umich.edu

Principal Investigator: Thomas J. Armstrong, PhD, 734/763-3742

Public Contact: Sheryl S. Ulin, PhD, 734/615-2683; Fax: 734/764-3451

Project Number: H133E980007

Start Date: August 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000; FY 01 $800,000; FY 02

$800,000

Abstract: This RERC combines ergonomic interventions, work and worksite modifications,

assistive technologies, and medical interventions to facilitate placement of workers with disabilities,

and helps prevent development of subsequent musculoskeletal illnesses and injuries. The Model

System establishes a database to include information on a broad range of interventions and case

examples as well as procedures for assessing workers, analyzing jobs, identifying accommodation

needs, and selecting interventions, including ergonomic technologies. The comprehensive approach

involving rehabilitation medicine and ergonomics culminates in a web-based Model System that can

be used by rehabilitation professionals, employers, consumers, and organizations.
3-16 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering Research Center on Technology Transfer

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

322 Kimball Tower

Buffalo, NY 14214

jimleahy@acsu.buffalo.edu

http://cosmos.buffalo.edu/t2rerc

Principal Investigator: Joseph Lane

Public Contact: James Leahy, 716/829-3141 (V); 800/628-2281 (TTY); Fax: 716/829- 2420

Project Number: H133E980024

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $900,000; FY 99 $900,000; FY 00 $900,000; FY 01 $900,000; FY 02

$900,000

Abstract: This RERC improves the quality of life for people with disabilities by: advancing the

methods of technology transfer through research, transferring technologies into products through

development, and facilitating the commercialization of new and improved assistive devices. These

three outcomes are accomplished through collaborations with academic, industrial, consumer, and

government stakeholders. The Center, a partnership of technical, marketing, and consumer expertise

and networks: (1) conducts research on the technology transfer process as it is applied to the field of

assistive technology, and develops, validates, and disseminates comprehensive models of technology

transfer; (2) applies the research results by implementing the technology transfer process through a

development program; (3) identifies and transfers breakthrough technologies to industry through a

demand-pull model, transferring at least three technologies annually; (4) identifies and transfers

useful new inventions to the marketplace through a supply-pull model, transferring three to five

products annually; (5) delivers training, dissemination, and technical assistance programs to stakeholders in the field; and (6) develops an online technology transfer course consisting of eight training modules accessible through the project’s web site. The dissemination program includes a stateof-the-practice conference and the development of a technology transfer program to be offered for

presentation in year three. The Center functions as an intermediary and a catalyst, improving the

process while expanding the network of stakeholders involved with the field. The end result: new

and improved AT products available in the marketplace that benefit professional service providers,

family members, and people with disabilities.
Technology for Access and Function 3-17

Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering and Research Center (RERC) on Universal

Design and the Built Environment at Buffalo

State University of New York (SUNY) at Buffalo

Department of Architecture

378 Hayes Hall

Buffalo, NY 14214

rercud@ap.buffalo.edu

http://www.ap.buffalo.edu/~idea

http://www.ap.buffalo.edu/~rercud

Principal Investigator: Edward Steinfeld, ArchD, 716/829-3485, ext. 327

Public Contact: Danise Levine, 716/829-3485, ext. 330; Fax: 716/829-3861

Project Number: H133E990005

Start Date: November 1, 1999

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $599,965; FY 00 $599,952; FY 01 $599,932; FY 02 $799,835

Abstract: The RERC on Universal Design and the Built Environment promotes the adoption of

universal design. Research programs include the Prototype Anthropometric Database Project, a

research database on anthropometrics of wheelchair users for application to ergonomic design, and

The Buildings in Use Project that demonstrates the benefits of universal design by conducting postoccupancy evaluations of buildings currently in use. Product development efforts include development of prototypes for innovative universally designed products, evaluation and testing of these

prototypes, and commercialization assistance to facilitate bringing each prototype to market. The

Visitability Initiative conducts training and action research in eight cities to develop visitability

demonstration projects, and is a collaboration with Concrete Change, a consumer advocacy organization focusing on making housing “visitable” by people with disabilities. The RERC ̃’s activities

also include universal design education and technical assistance, along with publication and dissemination of universal design resources.
3-18 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center on Communication

Enhancement

Duke University

Department of Surgery

Division of Speech Pathology and Audiology

Duke University Medical Center, Box 3888

Durham, NC 27710

aac-rerc@mc.duke.edu

http://www.aac-rerc.com

Principal Investigator: Frank DeRuyter, PhD, 919/684-6271

Public Contact: Kevin Caves, BSME, ATP, 919/681-9983; Fax: 919/681-9984

Project Number: H133E980026

Start Date: November 1, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $899,996; FY 99 $899,990; FY 00 $900,000; FY 01 $900,000; FY 02

$900,000

Abstract: This RERC uses innovative communications technologies to benefit researchers, engineers, rehabilitation service providers, developers, and users of alternative and augmentative communication (AAC) technologies. The project: (1) investigates attitudinal barriers toward technology

use by elderly people with communication disorders, their listeners, and service providers; (2)

studies the organizational strategies of adult AAC users to determine if preferences are predictive of

performance using AAC; (3) studies how to improve AAC technologies for young children with

significant communication disorders by evaluating learning demands and functional performance

(also involves development of design specifications); (4) evaluates and enhances communication

rate efficiency and effectiveness through the development of procedures and software technology

that simulates and measures the performance of AAC technologies; (5) identifies barriers to employment, describes strategies to overcome them, documents design specifications for AAC technologies, and describes action plans to achieve successful employment outcomes; (6) increases employment opportunities for graduates of an employment and AAC program; and (7) develops a

coordinated program that monitors and seeks out technology developments in both commercial form

and prerelease development stages that affect the engineering and clinical AAC field.
Technology for Access and Function 3-19

Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center (RERC) on Universal

Design and the Built Environment at NCSU

North Carolina State University

Center for Universal Design

104 Brooks Hall, 50 Pullen Road

Campus Box 8613

Raleigh, NC 27695-8613

cud@ncsu.edu

http://www.design.ncsu.edu/cud

Principal Investigator: Molly Story, 707/578-6839

Public Contact: Sallie Haile, 800/647-6777 (V/TTY); 919/515-8547 (V/TTY, information requests

only); Fax: 919/515-7330

Project Number: H133E990002

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $399,989; FY 00 $399,967; FY 01 $399,955; FY 02 $599,914

Abstract: This RERC improves the accessibility and usability of the built environment and advances the field of universal design. To achieve its goals, the RERC conducts an integrated program

of research and development programs, training programs, and a comprehensive program of information and referral and technical assistance. The major Center research project is developing

multidisciplinary environmental assessment tools to evaluate the complex and dynamic relationship

between the individual and the environment. Another research project is documenting a set of case

studies of successful universal design implementations. Development projects include creating

model architectural plans and products that demonstrate maximum universal usability. Training

activities include postsecondary and continuing education and supporting the biennial international

conference on universal design.
3-20 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Wheeled Mobility

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

Forbes Tower, Suite 5044

Pittsburgh, PA 15260

dbrienza@pitt.edu

http://www.rercwm.pitt.edu

Principal Investigator: David M. Brienza, PhD; Clifford Brubaker, PhD

Public Contact: Mary Jo Geyer, PhD, Associate Director, 412/383-6571 (V); 412/383-6598 (TTY);

Fax: 412/383-6597

Project Number: H133E990001

Start Date: January 1, 1999

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $900,000; FY 00 $900,000; FY 01 $900,000; FY 02 $1,064,561

Abstract: The RERC on Wheeled Mobility investigates the use of dynamic seating for reducing

spasticity and enhancing seating comfort; investigates the biomechanical characteristics of soft tissue

related to the risk of developing pressure ulcers and the relationship between pressure measurements

and pressure ulcer incidence; develops and validates the use of outcomes measures for seating and

mobility intervention; and investigates the use of the web as a seating decision support tool for

consumers. This project also develops and evaluates a comparative data source for use in decision

support of wheelchair selection; an interface for integrating external devices with powered wheelchairs; wheelchair seating standards; standardized postural measures; injury prevention wheelchair

technologies; and enhanced controls for powered wheelchairs.
Technology for Access and Function 3-21

Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Wheelchair

Transportation Safety

University of Pittsburgh

School of Rehabilitation and Health Sciences

Department of Rehabilitation Science and Technology

Forbes Tower, Suite 5044

Pittsburgh, PA 15260

ginaber@pitt.edu

http://www.rercwts.pitt.edu

Principal Investigator: Gina E. Bertocci, PhD, 412/383-6595

Public Contact: Jean Webb, 412/383-6586; Fax: 412/383-6596

Project Number: H133E010302

Start Date: November 1, 2001

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $868,840; FY 02 $899,057

Abstract: This RERC aims to improve the safety of wheelchair users who remain seated in their

wheelchair while using public and private motor-vehicle transportation. RERC tasks investigate and

develop new wheelchair tiedown and occupant restraint system technologies, including wheelchairintegrated restraints and universal docking concepts, that enable wheelchair users to secure and

release their wheelchair independently and quickly, and use an effective occupant restraint system

without the need for assistance. The RERC also researches the issues and factors involved in providing improved occupant protection to wheelchair-seated drivers and passengers in rear and side

impacts, and uses a multifaceted approach, including in-depth investigations of real-world accidents,

to investigate the incidence, severity, and causes of injuries to wheelchair-seated occupants in different sizes of vehicles and in different types of crashes and non-impact incidents experienced during

vehicle motion. In particular, this RERC explores the need for, and suitability of, using different

levels of wheelchair securement and occupant restraint in larger public transit vehicles, with the goal

of recommending and developing equipment and systems that provide for a safe ride using equipment and procedures that are more compatible with the operational needs of the transit environment.

The program includes a comprehensive research and development effort that involves consumers,

manufacturers, students, clinicians, transport providers, and rehabilitation technology experts. The

RERC also has active programs of information dissemination, training, and technology transfer

using personnel, mechanisms, and facilities that have been previously established at the University

of Pittsburgh/University of Michigan.
3-22 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Information

Technology Access

University of Wisconsin/Madison

Trace Research and Development Center

2107 Engineering Centers Building

1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

http://trace.wisc.edu/itrerc

Principal Investigator: Gregg C. Vanderheiden, PhD, 608/263-5788

Public Contact: Nancy Gores, 608/262-2309 (V); 608/263-5408 (TTY); Fax: 608/262- 8848

Project Number: H133E980008

Start Date: June 12, 1998

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $1,350,000; FY 99 $1,350,000; FY 00 $1,350,000; FY 01 $1,350,000; FY

02 $1,350,000

Abstract: This RERC improves access by individuals with all types, degrees, and combinations of

disabilities to a wide range of technologies, including computers, ATMs, kiosks, point-of-sale

devices and smartcards, home and pocket information appliances, Internet technologies (XML,

XSL, CSS, SMIL, etc.), intranets, and 3-D and immersive environments. As one component in a

larger system of consumers, researchers, industry, and policy and public agencies, the Trace Center’s

program is designed to work within the existing structure, supporting other components and coordinating its efforts to address the functioning of the whole. The program identifies strategies that can

be used by industry to broaden the user base for their standard products, so individuals with as broad

a range of abilities as possible are able to use standard products directly. Further, the Center targets

specific compatibility and interconnection standards work to ensure that people who cannot use

products directly are able to operate them using assistive technologies. The Center focuses on the

use of targeted projects and collaboration, both national and international, to carry out the research,

development, information dissemination, training, and standard-setting activities required. The

approach is intended to be flexible, forward-looking, and broad in scope, yet focused on key access

issues as defined by its consumer constituency and its research programs.
Technology for Access and Function 3-23

Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Telecommunication

Access

University of Wisconsin/Madison

Trace Center, College of Engineering

2107 Engineering Centers Building

1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

http://trace.wisc.edu/telrerc

Principal Investigator: Gregg C. Vanderheiden, PhD (Trace); Judy Harkins, PhD (Gallaudet

University), 608/263-5788 (Trace); 202/561-5257 (Gallaudet)

Public Contact: Nancy Gores, 608/263-2309 (V); 608/263-5408 (TTY); Fax: 608/262- 8848

Project Number: H133E990006

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $675,000; FY 00 $675,000; FY 01 $675,000; FY 02 $675,000

Abstract: This RERC identifies telecommunication access barriers in current and future technologies, work with others in the field to identify solution strategies, test them, implement any necessary

standards, and assist industry in transferring the ideas into their commercial products. Activities of

the Center include research, applied research and development, training and technical assistance, and

dissemination and utilization. Technologies being addressed include: (1) customer premises equipment (CPE) of all types, including phones, video phones, pagers, messaging systems, etc.; (2)

telecommunication systems and services, including voice mail, interactive voice response systems,

etc.; (3) network topologies; (4) telecommunications standards; and (5) next-generation multimedia

telecommunication systems, including telecollaboration, virtual meetings, etc. The primary focus is

on making these systems directly usable by people with all types and degrees of disability. A secondary focus is ensuring compatibility with assistive technologies such as TTYs, assistive listening

devices, alternative input devices, and devices with alternative displays.
3-24 Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Accessible Medical

Instrumentation

Marquette University

Department of Biomedical Engineering

P.O. Box 1881

Milwaukee, WI 53201

jack.winters@marquette.edu

Principal Investigator: Jack Winters, PhD; Molly Follette Story, PhD, 414/288- 7522

Public Contact: June Isaacson-Kailes, Fax: 414/288-7938

Project Number: H133E020729

Start Date: November 1, 2002

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $901,131

Abstract: The RERC on Accessible Medical Instrumentation: (1) increases knowledge of, access to,

and utilization of healthcare instrumentation and services by individuals with disabilities; (2) increases awareness of and access to employment in the healthcare professions by individuals with

disabilities; and (3) serves as a national center of excellence for this priority topic area. Specific

research projects include: (1) Needs analysis for people with disabilities as both recipients and

providers of healthcare services, and for manufacturers of healthcare instrumentation; (2) usability

analyses to determine what makes certain medical instrumentation either exemplary or problematic

yet essential to healthcare service delivery; (3) accessibility and universal usability analysis to

identify classification and measurement approaches that could be used to explore metrics for accessibility of medical instrumentation; and (4) policy analyses to explore how medical policies affect

healthcare utilization and employment in the healthcare professions of persons with disabilities.

Specific development projects include: (1) development of tools for usability and accessibility

analysis; (2) development of modified and new accessible medical instrumentation; (3) monitoring

of, and involvement in development of, emerging, accessible healthcare technologies; and (4)

development of design guidelines for accessible medical instrumentation and model policies for

healthcare service delivery.
Technology for Access and Function 3-25

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Wayfinding Technologies for People with Visual Impairments:

Research and Development of an Integrated Platform

Sendero Group, LLC

1118 Maple Lane

Davis, CA 95616-1723

mikemay@senderogroup.com

http://www.senderogroup.com

Principal Investigator: Michael May

Public Contact: 530/757-6800; Fax: 530/757-6700

Project Number: H133A011903

Start Date: December 1, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $449,065; FY 02 $449,895

Abstract: This project develops a hardware and software platform that provides accessible location

and navigation information for people who are blind or who have visual impairments who are

traveling in indoor and outdoor environments. Development activities focus on creating an effective

user interface and developing a common hardware and software platform that exploits the Global

Positioning System (GPS) and other current and emerging navigation technologies. Specific activities include integrating navigation aids that have been developed by Sendero LLC (GPS Talk) and

by the University of California-Santa Barbara/CMU group headed by Jack Loomis (the Personal

Guidance System, or PGS). The platform also accesses information from other devices, including

Talking-Signs® type devices, intersection signalization controls, an indoor digital sign system to be

developed during this project at the University of Minnesota, a spatialized tactile stimulator to be

developed at UCSB, a dead reckoning pedestrian navigation system, and cellular phones with GPS

capabilities. For navigating in outdoor environments, a system could aid pedestrians who are blind at

complex intersections and roundabouts, and devices could assess and prevent veer.
3-26 Technology for Access and Function

Disability and Rehabilitation Research Projects

California

Community Research for Assistive Technology

California Foundation for Independent Living Centers (CFILC)

660 J Street, Suite 270

Sacramento, CA 95814

anoakes@cfilc.org

http://www.atnet.org/CR4AT/cr4athome.html

Principal Investigator: Tanis Doe, PhD

Public Contact: Amy Noakes, Project Coordinator, 916/325-1690 (V); 916/325-1695 (TTY); Fax:

916/325-1699

Project Number: H133A010702

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 01 $299,910; FY 02 $299,893

Abstract: This project increases the capacity of the independent living community to work with its

members and stakeholders to collect research data on access and use of AT to improve the lives of

people with disabilities. Using a participatory research approach, the California Foundation for

Independent Living Centers (CFILC) is using an ecological model to develop cumulative research

data on the use of and access to AT by people with disabilities. University researchers train participants in research methods and assist with data collection and analysis. Community advocates conduct focus groups, surveys, and action research in their respective regions. Advocates also train

university students in community-based research related to AT and independent living.
Technology for Access and Function 3-27

Disability and Rehabilitation Research Projects

Georgia

Information Technology Technical Assistance and Training Center

(ITTATC)

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street

Atlanta, GA 30332-0156

ittac@arch.gatech.edu

http://www.ittatc.org

Principal Investigator: Stephen Sprigle, PhD, 404/385-4302

Public Contact: Mimi Kessler, Project Director, 404/894-0953; Fax: 404/894-9320

Project Number: H133A000405

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $1,500,000; FY 01 $1,500,000; FY 02 $1,500,000

Abstract: This project provides information, training, and technical assistance to support the implementation of Section 508 of the Rehabilitation Act and Section 255 of the Telecommunications Act

to industry, state officials, trainers and consumers. The Center promotes the benefits of universal

design to technology manufacturers, product designers and engineers, technical writers, marketers,

and purchasers of IT. It also works closely with federal regulatory agencies including the Federal

Communications Commission, the Access Board, the Department of Justice, and the General Services Administration to advance understanding and knowledge utilization of approaches to the

requirements of Sections 255 and 508 through training and technical assistance activities. The

Information Technology Technical Assistance and Training Center is a collaborative project of the

Center for Assistive Technology and Environmental Access, World Institute on Disability, University of Iowa Law, Health Policy and Disability Center in Washington DC, Trace Center at the University of Wisconsin Madison, NIDRR’s Disability and Business Technical Assistance Centers, and

ITTATC’s National Advisory Council among others.
3-28 Technology for Access and Function

Disability and Rehabilitation Research Projects

Iowa

Technology for Independence: A Community-Based Resource Center

(TI:CBRC)

University of Iowa

Law, Health, Policy, and Disability Center

431 Boyd Law Building

Iowa City, IA 52242

peter-blanck@uiowa.edu; james-schmeling@uiowa.edu

http://www.its.uiowa.edu/law

Principal Investigator: Peter D. Blanck, PhD, JD, 319/335-9043

Public Contact: James Schmeling, 319/335-8458; Fax: 319/335-9098 (Blanck); 319/335-9764

(Schmeling)

Project Number: H133A021801

Start Date: November 1, 2002

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $299,965

Abstract: The CBRC builds and enhances the capacity of community-based and consumer-directed

disability organizations to design, implement, and disseminate research activities and projects that

promote environmental access and use of technology for independence. The CBRC uses a combination of implementation strategies such as leadership development, training, and technical assistance

activities, web-assisted audioconference training, distance education, and three annual onsite symposia in Iowa City, Houston, and Washington, D.C. CBRC activities are directed to selected research

teams, research centers, community-based disability organizations, and University research centers.

Using multi- and inter-disciplinary models, the CBRC builds and enhances the capacity of these and

other entities to conduct research that is both scientifically rigorous and relevant to real-world social,

policy, and legal interests. The research team framework pairs researchers from community-based

organizations with researchers from university-based research centers to improve existing and future

collaborative relationships. The research pairs comprise individuals with diverse backgrounds, in

terms of their disability type and severity, ethnicity, and socioeconomic experiences. The participants form close working relationships designed to advance knowledge in the areas related to technology for independence and environmental access. The project merges the national experience and

expertise of ILRU regarding independent living and principles of choice and self determination,

with the nationally recognized research expertise of LHPDC in the areas of technology access and

use, employment policy, and civil rights.
Technology for Access and Function 3-29

Disability and Rehabilitation Research Projects

Kansas

Mental Retardation and Technology Disability and Rehabilitation

Research Project

University of Kansas

Beach Center on Disability

1200 Sunnyside Avenue, Room 3136

Lawrence, KS 66045-7555

wehmeyer@ku.edu

http://www.beachcenter.org

Principal Investigator: Michael Wehmeyer, PhD

Public Contact: 785/864-0723; Fax: 785/864-3458

Project Number: H133A010602

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $299,871; FY 02 $299,778

Abstract: This project increases the ability of people with mental retardation and other cognitive

disabilities to use electronic and information technology as well as assistive and universally designed

technologies. It examines current technology design features, gaps that exist in its utilization, what

state-of-the-art technology exists or is emerging that would provide benefits, and what modifications

to existing or new technology would enhance this population’s inclusion in the community and

integration into the workplace. The project includes two national consensus conferences, in conjunction with the national conferences held annually or semi- annually by American Association on

Mental Retardation (AAMR) and The Arc of the United States, to address these issues. Additional

activities include reviewing and synthesizing the extant literature, canvasing existing disabilityrelated technology advocates and associations (including Tech Act Centers and related entities), and

conducting focused interviews of key stakeholders. The project also includes a Special Interest

Group on Technology and Mental Retardation through the AAMR, which allows stakeholders in the

field the opportunity to participate in all project activities. A national expert advisory panel consisting of representatives from national disability organizations, manufacturers, people with mental

retardation, experts in the field, and parent/family representatives are involved in all consensusbuilding activities and advise the project through its duration. The project is a collaboration of the

Beach Center on Disability at the University of Kansas, The Arc, the AAMR, AbleLink Technologies, the Coleman Institute on Cognitive Disabilities, the Self-Advocate Coalition of Kansas and the

Joseph P. Kennedy Jr. Foundation.
3-30 Technology for Access and Function

Disability and Rehabilitation Research Projects

Missouri

Assistive Technology in the Community

Washington University

School of Medicine

Occupational Therapy

4444 Forest Park Avenue

St. Louis, MO 63108

grayda@msnotes.wustl.edu

Principal Investigator: David B. Gray, PhD, 314/286-1658

Public Contact: Kerri Morgan, 314/286-1659; Fax: 314/286-1601

Project Number: H133A010701

Start Date: January 1, 2002

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $300,000; FY 02 $300,000

Abstract: This project promotes AT as a means of increasing participation in major life activities by

people with disabilities. Project activities include: (1) assessing the use, disuse, injury, and effects

that AT has on the participation of people with disabilities in major life activities, to determine what

technologies are of the most benefit in community settings; (2) implementing a community-based

AT program in collaboration with Paraquad, a nationally recognized Center for Independent Living,

to improve the satisfaction of participants in their self-chosen life activities; (3) educating consumers, independent living staff, educators, health care professionals, AT industry leaders, and public

policy-makers about the influence AT has on major life activities.
Technology for Access and Function 3-31

Disability and Rehabilitation Research Projects

North Carolina

Advancing Assistive Technology Outcomes

Duke University

Division of Speech Pathology and Audiology

DUMC-3888

Durham, NC 27710

frank.deruyter@duke.edu

http://www.AToutcomes.com

Principal Investigator: Frank DeRuyter, PhD

Public Contact: Mitzi May, 919/681-9983 (V); 919/684-6626 (TTY); Fax: 919/681-9984

Project Number: H133A010401

Start Date: November 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $449,787; FY 02 $449,932

Abstract: This program advances the field of AT outcomes measurement. Research activities

include: (1) performing a critical analysis of existing approaches to measurement and further developing instruments that are promising; (2) identifying unmet needs and assessing barriers to AT

outcomes measurement; and (3) undertaking a prospective longitudinal study of factors associated

with assistive device adoption, use, and discontinuance. Development activities include: (a) developing and evaluating independent electronic data collection or computer-assisted systems for the

capture, analysis, and interpretation of AT outcomes information; (b) developing and evaluating

improved methods and systems for communication of outcomes information among significant

stakeholders; (c) automatic log file performance data-capturing for AT outcomes assessment; and (d)

development of new or improved AT outcomes tools.
3-32 Technology for Access and Function

Disability and Rehabilitation Research Projects

Oregon

Think and Link: Email for Individuals with Cognitive Disabilities

Western Oregon University

Teaching Research Division

99 West Tenth Avenue, Suite 370

Eugene, OR 97401

mckay@oregon.uoregon.edu

http://www.think-and-link.org

Principal Investigator: McKay Moore Sohlberg, PhD

Public Contact: 541/346-2586; Fax: 541/346-0599

Project Number: H133A010610

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $300,000; FY 02 $300,000

Abstract: This project improves the access and use of electronic mail by individuals with cognitive

disabilities resulting from brain injury. The Internet’s email component has created an unparalleled

communication network linking people for commercial and social purposes. It holds tremendous

potential for lessening social isolation, one of the most pervasive and devastating consequences of

brain injury. However, virtually nothing is known about what modifications are required to provide

successful access to this technology to people with cognitive disabilities that result from brain injury.

In addition, the diverse cognitive impairments confronting people with brain injury render an enormous challenge to the development of assistive devices that could improve accessibility to email.

Activities of this project include: (1) identifying the wide range of issues critical for long-term,

effective use of email by people with cognitive disabilities. (2) developing a diagnostic protocol, a

cyber- evaluation of the potential of a person with cognitive disabilities to use electronic communication; (3) developing a software toolkit that allows caregivers, support persons, and professionals to

fit an individual user with a customized email system; (4) creating a virtual clinic that supports

widespread dissemination and use of these materials by cognitive rehabilitation professionals. An

open-source software site on the web allows other worldwide researchers to use the new tools and

contribute tools of their own.
Technology for Access and Function 3-33

Disability and Rehabilitation Research Projects

Pennsylvania

Information Technology for Independence: Community-Based

Research

University of Pittsburgh

6026 Forbes Tower

Pittsburgh, PA 15260

parmanto@pitt.edu

Principal Investigator: Bambang Parmanto, PhD

Public Contact: 412/383-6649; Fax: 412/383-6655

Project Number: H133A021916

Start Date: January 1, 2003

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $299,945

Abstract: This project explores methods and technologies to mitigate barriers to computer and

Internet use encountered by people with disabilities. These barriers include basic ownership and

availability barriers, lack of accommodations for functional limitations, psychological barriers

arising from lack of coaching or mentoring, and the inaccessibility of the majority of web sites for

individuals with certain disabilities such as visual impairment or dyslexia. The playing field of

computer ownership and Internet availability may be leveled in part by having public computer

stations, such as at centers for independent living. Functional barriers can be mitigated with AT. AT

cost issues and psychological barriers may be met partially through availability of devices and

coaching. Provision and evaluation of these accommodations is the first major research task of this

project. Computer laboratories are maintained in two community-based locations to test the range of

accommodation possibilities, including the match of correct assistive device to the individual and

appropriate coaching and mentoring. The second research task in this project is to develop and

evaluate a new approach to Internet accessibility through use of a gateway server. This gateway

should be able to deliver the contents of any web site, whatever its level of accessibility, by transforming the contents into the most accessible format for any user, as Google does for personal

digital assistant (PDA) users. The gateway will promote the accessibility of the Internet without

requiring that commercial web sites follow promulgated guidelines or standards for users with

disabilities, something that web developers often seem to resist.
3-34 Technology for Access and Function

Disability and Rehabilitation Research Projects

Virginia

Assistive Technology and Cognitive Disabilities

Brain Injury Association of America, Inc.

105 North Alfred Street

Alexandria, VA 22314

kflippo@biausa.org

http://www.biausa.org

Principal Investigator: Karen Flippo

Public Contact: 703/236-6000, ext. 108; Fax: 703/236-6001

Project Number: H133A010607

Start Date: November 1, 2001

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $299,982; FY 02 $299,379

Abstract: This project assesses the use of several types of information technologies by children and

adults with cognitive disabilities, specifically individuals with TBI and mental retardation. Outcomes include: (1) a catalog of existing portable Devices for Memory and Organization (DMO), (2)

a list of features that enhance or inhibit use of these general purpose and special-use technologies,

(3) results of needs surveys regarding use of these technologies, (4) white papers describing project

findings, (5) tip cards to assist families in purchasing devices, (6) stronger partnerships between the

consumer and research and development communities, and (7) recommendations for memory and

organization device modifications and features for individuals with brain injury and mental retardation. The Brain Injury Association, Inc. leads and administers this collaborative partnership, which

includes the Traumatic Brain Injury Model Systems Projects at Moss Rehabilitation Research Institute and Spaulding Rehabilitation Hospital, the Institute on Disabilities/Center for Excellence on

Developmental Disabilities at Temple University, and the University of Akron.
Technology for Access and Function 3-35

Disability and Rehabilitation Research Projects

Wisconsin

ATOMS Project: Assistive Technology Outcomes Measurement System

University of Wisconsin - Milwaukee

Center for Rehabilitation Sciences and Technology

College of Health Sciences

P.O. Box 413

Milwaukee, WI 53201-0413

atoms@uwm.edu

http://www.atoms.uwm.edu

Principal Investigator: Roger O. Smith, PhD

Public Contact: 414/229-6568 (V); 414/229-5628 (TTY); Fax: 414/906-3959

Project Number: H133A010403

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $450,000; FY 02 $450,000

Abstract: The ATOMS Project (Assistive Technology Outcomes Measurement System) targets the

definition and pre-development phases of a next-generation AT outcomes measurement system. A

comprehensive needs assessment, prototype instrument development, and consensus building activities frame an integrated set of research and development activities to address urgent needs to identify

components of a future AT outcomes measurement system. In addition, these activities generate

information about the relationships of AT outcomes factors that produce a better understanding of

AT use and abandonment.
3-36 Technology for Access and Function

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

California

The Effect of Ankle-Foot Orthotic Design on Hemiplegic Gait

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

P.O. Box 3500 Los Amigos Station

12841 Dahlia Street

Downey, CA 90242-4111

pklab@larei.org

Principal Investigator: Sara J. Mulroy, PhD

Public Contact: 562/401-7177; Fax: 562/803-5693

Project Number: H133G000004

Start Date: June 1, 2000

Length: 36 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 00 $149,686; FY 01 $149,686; FY 02 $149,686

Abstract: This project defines the clinical criteria for optimal orthotic prescription in persons who

have had a stroke. The study originates from the identification of significant lower extremity weakness in a recent study of recovery of walking in patients after stroke. A pilot survey of 10 patients

who had been prescribed an ankle foot orthosis (AFO) after discharge from inpatient rehabilitation

found 40 percent of the respondents were no longer using their orthosis. Reasons for the abandonment included improved walking capability, inability to don the AFO independently, and lack of

improvement in walking. The results of this pilot indicate that the orthoses are not fully meeting the

needs of this patient population. There is a need to develop criteria for orthotic prescription based on

the patient’s lower extremity strength and muscle tone. In concert with the development of definitive

prescription criteria, patients need to be provided with information as to the purpose of the orthosis

and what changes in their walking are realistically expected.
Technology for Access and Function 3-37

Field-Initiated Projects (FIPs)

California

Robust, Low-Cost, Refreshable Braille Display

SRI International

333 Ravenswood Avenue

Menlo Park, CA 94025

richard.heydt@sri.com

Principal Investigator: Richard Heydt, PhD

Public Contact: 650/859-4452; Fax: 650/859-4894

Project Number: H133G000047

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $149,930; FY 01 $149,900; FY 02 $149,905

Abstract: This project conducts research to develop a refreshable braille cell that is inexpensive,

environmentally robust, and extensible to two-dimensional (page) braille displays. The project

capitalizes on microelectromechanical systems (MEMS) fabrication methods and novel

electroactuation technology to make braille cells that are significantly lower in cost than those

currently available. The purpose of the work is to establish a process for the construction of

refreshable braille displays that is not limited to a single line of braille characters and that creates

more affordable devices than existing refreshable displays, which often cost $5,000 or more. Goals

include: (1) demonstrating braille dot actuation that meets essential force, response time, power

dissipation, and other requirements; (2) designing and building several prototype braille cells; and

(3) testing the braille cells with experienced braille readers.
3-38 Technology for Access and Function

Field-Initiated Projects (FIPs)

California

Development of a Transitional Ortho-Therapeutic Walker

(TOTWalker) for Preschool Children with Physical Disabilities

Lucile Packard Children’s Hospitals at Stanford

Rehabilitation Technology and Therapy Center

1010 Corporation Way

Palo Alto, CA 94303-4304

christine.wright@medcenter.stanford.edu

http://www-med.stanford.edu/lpch/rec

Principal Investigator: Christine Wright

Public Contact: 650/237-9219; Fax: 650/237-9204

Project Number: H133G990103

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $149,941; FY 00 $149,978; FY 01 $149,998; FY 02 (No-cost extension

through 3/31/2003)

Abstract: This project develops and evaluates a new and innovative support walker that allows

children with physical disabilities to maneuver in the indoor environments of home and school and

to approach people and manipulate objects. The Transitional Ortho-Therapeutic Walker

(TOTWalker) is designed primarily for children with cerebral palsy, TBI, or developmental delay,

who are 12 months to 5 years of age and who have no means for self-directed, upright mobility. The

TOTWalker provides a highly maneuverable and efficient means for achieving indoor mobility. It

also provides an efficient means for achieving mobility as measured by distance and speed of travel,

and increases a child’s accessibility to the environment.
Technology for Access and Function 3-39

Field-Initiated Projects (FIPs)

California

Optimizing Assistive Technology Service with Video Teleconferencing

Lucile Packard Children’s Hospitals at Stanford

Rehabilitation Technology Center

1010 Corporation Way

Palo Alto, CA 94303-4304

judy.henderson@medcenter.stanford.edu

http://www-med.stanford.edu/lpch/rec

Principal Investigator: Judy Henderson

Public Contact: 650/237-9222; Fax: 650/237-9204

Project Number: H133G990087

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $150,000; FY 00 $149,997; FY 01 $150,000; FY 02 (No-cost extension

through 3/31/2003)

Abstract: This project develops an interactive video teleconferencing (VTC) protocol to provide

expert AT evaluations to individuals with significant physical and speech disabilities and their local

support teams living in rural or underserved areas. The VTC protocol includes methods, equipment,

and materials specific to the provision of augmentative communication, environmental control, and

computer access evaluations to improve independent functioning in daily living, academic settings,

employment, and leisure activities. The VTC protocol is developed during video teleconferencing

evaluations by a specialized team with extensive experience in these types of AT.
3-40 Technology for Access and Function

Field-Initiated Projects (FIPs)

California

The Learning and Transfer of Prosthetic Control

San Francisco State University

1600 Holloway Avenue

San Francisco, CA 94132-1700

saw@sfsu.edu

http://www.mblab.sfsu.edu

Principal Investigator: Stephen Wallace, PhD

Public Contact: 415/338-6984; Fax: 415/338-7566

Project Number: H133G000024

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $149,011; FY 01 $149,011; FY 02 $148, 900

Abstract: By studying the use of a simulated body-powered upper-extremity artificial limb, this

project hopes to reduce the learning time required to use a prosthetic limb effectively and to decrease the unusually high rejection rates for people with amputations fitted with a new prosthesis.

Project objectives include: (1) describing how people learn to control and coordinate body-powered

upper-extremity prostheses, by assessing tasks related to daily living, in regard to changes in movement strategies, the rate at which learning occurs, and the degree to which changes in performance

are maintained over a retention interval; (2) understanding bilateral transfer of movement components used to reach, grasp, transport, and apply appropriate pressure to objects; and (3) determining

whether the type of prosthesis (i.e., voluntary opening and voluntary closing) influences the rate at

which an individual achieves functional control of activities related to prosthetic manipulation. After

a thorough understanding of how people learn prosthetic control is developed, the simulator could

be successfully employed after amputation, up to prosthesis fitting, to familiarize patients with

prosthesis use and control skills. Findings could also provide therapists with new strategies for

training people with amputations to regain functional independence with a newly acquired artificial

limb. Finally, the experiments contribute to the development of a theoretical knowledge base for

clinical practice.
Technology for Access and Function 3-41

Field-Initiated Projects (FIPs)

Delaware

Automatic Generation of Optimal Tactile Graphics

University of Delaware

Electrical and Computer Engineering Department

312 Evans Hall

Newark, DE 19716

barner@ee.udel.edu

http://www.ece.udel.edu/~barner

Principal Investigator: Kenneth Barner, PhD, 302/831-6937

Public Contact: Fax: 302/831-4316

Project Number: H133G020103

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $149,700

Abstract: This project develops and implements image manipulation algorithms optimal for generating binary tactile graphics. Specifically, the following methods are optimized for the automatic

translation of images to binary representations appropriate for tactile display: (1) Edge Detection—

boundaries in images often represent important context queues; extracting edges allows these queues

to be tactilely represented. This can be accomplished in a multi-resolution approach allowing the

user to control the detail level presented. (2) Region Segmentation—graphic content can often be

separated into distinct regions, or objects. While edge detection operations frequently yield broken

boundaries, resulting in confusing tactile representations; segmentation can produce closed boundaries optimized to retain object integrity that can be combined with texturing procedures. (3) Tactile

Texturing—binary texturing can be introduced to yield tactile information on the image gray level or

color; such texturing, or halftoning, methods can be adopted from the literature on visual halftones

and optimized specifically for tactile representations. The efficacy of each method is tested utilizing

human subjects and the results are utilized in the optimization of each algorithm. Software conversion routines and printing algorithms are also developed that allow the methods to be used with

existing software packages, such as word processors and web browsers, and to enable direct printing

on existing hardware, such as the TIGER printer and microcapsule paper.
3-42 Technology for Access and Function

Field-Initiated Projects (FIPs)

Delaware

Personalized Synthetic Speech Using ModelTalker: Development and

Evaluation

University of Delaware

Alfred I. duPont Hospital for Children

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899

bunnell@asel.udel.edu

http://www.asel.udel.edu/speech

Principal Investigator: H. Timothy Bunnell, PhD

Public Contact: 302/651-6835; Fax: 302/651-6895

Project Number: H133G990182

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $150,000; FY 00 $150,000; FY 01 $150,000; FY 02 (No-cost extension

through 12/31/2002)

Abstract: This project allows a sample group of consumers with ALS to capture their own voice for

use in an experimental alternative and augmentative communication (AAC) device called

ModelTalker. The new “corpus-based” speech synthesizer is capable of capturing voices and producing speech that can range in quality from that of recorded natural speech to high quality synthetic

speech and produce synthetic speech that can sound like the individual, and can additionally “play

back” utterances that were not actually recorded, but have been constructed (synthesized) from bits

of recorded speech. The project goals are: (1) to improve the voice capture procedures for creating

personalized voices, (2) to modify aspects of the synthesis and voice capture software to make them

more user friendly, (3) to prepare documentation and tutorial materials to allow people who are not

speech scientists to prepare their own personalized voices, and (4) to evaluate the voice capture

procedures and the synthesizer itself with one population of people who can benefit (people with

ALS). The project is developing an optimal list of utterances for talkers to record for ModelTalker, a

list that is as short as possible without compromising the quality of the resulting synthetic speech.

Once the list is optimized, the output from ModelTalker is compared to other synthesizers commonly used in AAC devices. Based on the results of this evaluation, the list, the ModelTalker, or

both are modified as needed.
Technology for Access and Function 3-43

Field-Initiated Projects (FIPs)

Delaware

Specifying the Facilitative Effects of Animation on the Understanding

of Action Word Representatives

Center for Applied Science and Engineering

Alfred I. duPont Hospital for Children

University of Delaware

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899

mineo@asel.udel.edu

Principal Investigator: Beth A. Mineo Mollica, PhD, 302/651-6836

Public Contact: Sonja Simowitz, Project Coordinator, 302/651-6796 (V); 302/651- 6794 (TTY);

Fax: 302/651-6793

Project Number: H133G990115

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $149,964; FY 00 $149,920; FY 01 $149,979; FY 02 (No-cost extension

through 5/31/2003)

Abstract: Using a customized computer-based assessment protocol, this project examines the

differential ability of several types of graphics (static and animated) to convey the meaning of action

word representations. Picture-based language representations afford access to augmentative and

alternative communication (AAC) options for many individuals who otherwise would be unable to

benefit from communication enhancement approaches. Some new products in the AAC marketplace

offer consumers the feature of animation. While it has been presumed that animation would make

the meaning of verb representations more salient, this position has not been proven, and it may in

fact be the case that the complexity of the linguistic task is affected by the complexity of the representation. Six varied representational types are investigated with children with typical development,

children with disabilities, adults with developmental disabilities, and adults with acquired cognitive

disabilities. Further, the investigators attempt to determine which characteristics of action representation positively affect performance.
3-44 Technology for Access and Function

Field-Initiated Projects (FIPs)

Delaware

An Upper Limb Orthosis for People with Muscular Dystrophy

Alfred I. duPont Institute of the Nemours Foundation

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899

trahman@nemours.org

Principal Investigator: Tariq Rahman, PhD

Public Contact: 302/651-6831; Fax: 302/651-6895

Project Number: H133G000117

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $147,970; FY 01 $149,497; FY 02 $149,911

Abstract: This project develops an orthosis that provides a full range of movement for people with

upper-limb weakness while still supporting their arms against gravity. For a person whose sensory

system is intact, the orthosis uses their sensory system to augment their residual motor ability. It

provides proprioception, an essential part of an effective interface between the human and the

orthosis. Five prototypes are developed and clinical trials with twenty consumers are performed.

Upon completion of the evaluation and analysis phases, the technology is transferred to a private

company. The expected result is a relatively inexpensive, functional, and well-concealed assistive

device that provides the opportunity for educational, vocational, and social interaction for thousands

of individuals with upper-extremity motor disabilities.
Technology for Access and Function 3-45

Field-Initiated Projects (FIPs)

Florida

The Development of a Tool to Enhance Communications Between

Blind and Sighted Mathematicians, Students, and Teachers: A Global

Translation Appliance

University of South Florida

Lakeland Campus

3433 Winter Lake Road

Lakeland, FL 33803

arthur@lklnd.usf.edu

Principal Investigator: Arthur I. Karshmer, PhD

Public Contact: 863/667-7067; Fax: 863/667-7096

Project Number: H133G010046

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $149,540; FY 02 $134,111

Abstract: This project builds a translator for several mark-up notations used in scientific,

mathematic, engineering, and technological fields. The primary difficulty encountered by students

with visual impairments in pursuing studies in science, mathematics, engineering or technology is

how to read and write mathematics. To overcome the limited expressiveness of six-dot braille

characters, a plethora of notations for marking-up mathematics have been devised, including

Nemeth Math code, Marburg code, the French standard, the Stuttgart standard, and others. These

notations are braille-based and designed specifically for people with visual impairments, and are not

known to sighted individuals; as a result, written technical communication between individuals who

are sighted and individuals who have visual impairments is quite difficult. Further, communication

between individuals who have visual impairments is also difficult when different notations are used.

The new tool allows free conversion among the Marburg code, Nemeth code, Latex and MathML by

developing a common intermediate format (CIF) for representing mathematics, and uses logic

programming and denotational semantics to translate between supported notations and the CIF. The

CIF is also used to develop a mark-up notation independent auditory browser for the understanding

of complex mathematical expressions by users with visual impairments. The auditory browser

conveys the structure of a mathematical expression as well as its content via speech output. The user

also has the ability to navigate the expression interactively and focus on its subparts in order to

understand the expression better.
3-46 Technology for Access and Function

Field-Initiated Projects (FIPs)

Illinois

Neuromuscular Reorganization to Improve the Control of Artificial

Limbs

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1124

Chicago, IL 60611

tkuiken@rehabchicago.org

Principal Investigator: Todd A. Kuiken, MD, PhD

Public Contact: 312/238-8072; Fax: 312/238-1166

Project Number: H133G990074

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $149,900; FY 00 $149,512; FY 01 $149,780; FY 02 (No-cost extension

through 5/31/2003)

Abstract: This project is concerned with improving myoelectric control of powered prostheses

using nerve-muscle grafts. Currently, people with upper limb amputations can only control one joint

at a time with myoelectric prostheses. By grafting the residual nerve endings to muscles in or near

an amputated limb, it may be possible to produce additional, independent surface electromyographic

(EMG) signals. The muscle would essentially be used as a biological amplifier of the nerve signals.

These additional myoelectric signals could be used to control multiple joints simultaneously in

externally powered prostheses. This approach has great potential for improving the functional use of

upper limb prostheses.
Technology for Access and Function 3-47

Field-Initiated Projects (FIPs)

Illinois

Cost Effectiveness of a Computerized Oral Reading Treatment for

Aphasia

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611-4496

lcherney@rehabchicago.org

Principal Investigator: Leora Cherney, PhD

Public Contact: 312/238-1117; Fax: 312/238-2635

Project Number: H133G010098

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $149,470; FY 02 $149,892

Abstract: This study evaluates the efficacy and cost-effectiveness of an innovative, computerized

treatment program for individuals with aphasia, a communication disorder and chronic condition.

Aphasia requires long-term treatment to ensure that individuals can participate in a full range of

vocational, recreational, and social activities. However, recent health care changes have seriously

curtailed the amount of treatment received by patients with aphasia. In this environment effective

treatments should be developed that can be easily administered and delivered at minimum cost. Oral

Reading for Language in Aphasia (ORLA) was originally developed to improve reading comprehension in individuals with aphasia. Preliminary studies indicate that (ORLA) is effective in improving

reading comprehension in patients with all types of aphasia. In addition to improvements in reading

comprehension, cross-modal generalization occurs in some patients, with improvements in auditory

comprehension and oral expression evident. The present study compares changes in communication

performance for a group of aphasic individuals receiving ORLA from a speech-language pathologist

and a group receiving a computerized version of the ORLA treatment.
3-48 Technology for Access and Function

Field-Initiated Projects (FIPs)

Iowa

Computer Training Materials for Deaf-Blind Individuals

State of Iowa Department for the Blind

524 Fourth Street

Des Moines, IA 50309

Farver.kent@blind.state.ia.us

Principal Investigator: Kent A. Farver

Public Contact: 515/281-1256; Fax: 515/242-5781

Project Number: H133G020196

Start Date: August 1, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $148,870

Abstract: This project creates a comprehensive array of computer training materials tailored to the

needs of people who are deaf-blind. Objectives include: (1) developing 45 computer tutorials written

for people who are deaf-blind; (2) conducting three seminars to provide information and training to

VR professionals and others regarding computer access by people who are deaf-blind; and (3)

disseminating training materials to agencies serving people who are deaf-blind. The tutorials use an

innovative approach that trains people who are deaf-blind or blind to use a computer with assistive

technology. This includes a keyboard-only approach to the graphical Windows interface and information and step-by-step exercises that specifically address the screen reader-braille display combination the individual is using to operate mainstream or communications programs (each screen reader

and braille display uses unique keystrokes, configurations, and feedback). This project provides

people who are deaf-blind with computer skills they need to obtain and retain good jobs and to

pursue computer-based communications and recreational activities. It also provides VR professionals, consumer organizations, and other private and public agencies with professionally developed

tutorials they can give to clients for independent work or use in one-on-one or group computer

training.
Technology for Access and Function 3-49

Field-Initiated Projects (FIPs)

Kansas

Reusing AT/DME Acquired Through Public Funds: Developing a

Cost-Neutral, Consumer- Driven Program

University of Kansas Center for Research, Inc.

Schiefelbusch Institute for Life Span Studies

1000 Sunnyside Avenue

1052 Dole

Lawrence, KS 66045-7555

ssack@ku.edu

http://www.atk.ku.edu

Principal Investigator: Sara H. Sack, PhD, 620/421-8367

Public Contact: Pamela Cress, EdS, 620/421-6550, ext. 1888; Fax: 620/421-0954

Project Number: H133G010102

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 01 $149,740; FY 02 $149,991

Abstract: This project builds a consumer responsive, cost-neutral program to reuse and redistribute

durable medical equipment. The project addresses state and national needs in three critical ways.

First, it increases access to durable medical equipment and AT (including previously used technology) that promotes the likelihood that people are able to reach personal goals related to independent

living, employment, and improved social lives. Second, using previously owned equipment in good

condition spreads the benefit of limited state and federal resources across more people. And finally,

the reuse program reduces the consumption of natural resources such as aluminum, glass, plastics,

and fuel. The Reuse Program is composed of four interrelated components, including a data tracking

system, a consumer follow-up system, a reuse system through a network of statewide equipment

providers, and marketing. This project is a collaboration of the Technology Act grantee for Kansas,

the Assistive Technology for Kansans project (ATK), Kansas Medical Policy (Medicaid), Durable

medical equipment providers, and consumers.
3-50 Technology for Access and Function

Field-Initiated Projects (FIPs)

Massachusetts

Access to Convergent Media

WGBH Educational Foundation

125 Western Avenue

Boston, MA 02134

ncam@wgbh.org

http://ncam.wgbh.org

Principal Investigator: Larry R. Goldberg

Public Contact: Tom Wlodkowski, 617/300-3486; Fax: 617/300-1035

Project Number: H133G990105

Start Date: August 1, 1999

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 99 $150,000; FY 00 $150,000; FY 01 $150,000; FY 02 (No-cost extension

through 7/31/2003)

Abstract: This project attempts to make it possible for people who are blind or who have visual

impairments to use convergent media effectively, by influencing industry standards and developing

new media delivery technologies. “Convergent media” refers to programming and services growing

out of the intersection of broadcast and cable television, digital television, PC, and Internet technologies. The project objectives are: (1) to propose and develop standard approaches to tag, parse, and

present data so that electronic program guides and advanced services are accessible; (2) to develop

software/hardware specifications for a prototype system or systems, that enables orientation, navigation, and feedback when using electronic program guides; (3) to collaborate on development of the

prototype access system and integrate it into an alpha advanced cable set-top box; and (4) to identify

barriers to using convergent media, outline solutions, and suggest methods for carrying out such

solutions.
Technology for Access and Function 3-51

Field-Initiated Projects (FIPs)

Massachusetts

Access Solutions for Rich Media: Tools, Pathways, and Resources

WGBH Educational Foundation

CPB/WGBH National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

andrew_kirkpatrick@wgbh.org

http://ncam.wgbh.org

Principal Investigator: Andrew Kirkpatrick, 617/300-4420

Public Contact: Madeleine Rothberg, 617/300-2492; Fax: 617/300-1035

Project Number: H133G000109

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 00 $150,000; FY 01 $150,000; FY 02 $150,000

Abstract: The Access to Rich Media Project was established to ensure that people with visual or

auditory impairments can access rich media that is made available online. Project staff work with

researchers, technology developers, web designers, and consumers to develop, test, and disseminate

solutions to facilitate improvements in the accessibility of rich media. The project: (1) provides web

designers, multimedia developers, and access technology researchers with version 2.0 of MAGpie, a

captioning and description tool for use with a variety of media technologies; (2) runs the Rich Media

Accessibility Resource Center, with examples of accessible rich media, information about available

tools for rich media, links to a range of relevant resources, and discussion about multimedia access

issues and solutions; and (3) generates research findings from annual focus groups with web users

who have visual impairments or who have auditory impairments.
3-52 Technology for Access and Function

Field-Initiated Projects (FIPs)

Massachusetts

Access to Digital Television

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

ncam@wgbh.org

http://ncam.wgbh.org

Principal Investigator: Gerry Field

Public Contact: Mary Watkins, 617/300-3400; Fax: 617/300-1035

Project Number: H133G010170

Start Date: August 1, 2001

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: In the transition of the nation’s television system from analog to digital television (DTV)

broadcasts, this “DTV Access” project represents the needs of people with sensory disabilities.

Serious technical challenges may prevent Americans from participating in the pending transformation of communications and program delivery technologies if they are deaf, hard-of-hearing, blind

or if they have low vision. This project leads the effort to ensure that the next-generation of DTV

equipment does not replicate current problems or create new ones in the need to comply with the

Federal Communications Commission-mandated digital transition. Project staff are working with

broadcasters and standards-setting bodies to develop standards and open protocols, and to support

implementation of captions and descriptions in DTV broadcasts. The DTV Access project addresses

additional challenges that arise when broadcast programming is delivered via cable, satellite,

Internet or wireless technologies. It also works to include people with sensory disabilities in the

audience for the wealth of new program enhancements, interactive capabilities, and public and

private data services that DTV promises to deliver. The project unites industry, standards-setting

bodies, regulatory agencies, and consumers who have disabilities in a national, high-profile collaboration to provide equal access for people with disabilities to DTV programming, enhancements,

interactive components, and data services.
Technology for Access and Function 3-53

Field-Initiated Projects (FIPs)

Massachusetts

Beyond the Text: Access to Images, Audio, and Multimedia in eBooks

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

access@wgbh.org

http://ncam.wgbh.org

Principal Investigator: To be announced

Public Contact: NCAM, 617/300-3400

Project Number: H133G020091

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $150,000

Abstract: This project researches, develops, and disseminates recommended practices and demonstration models that enable access to and understanding of images, audio, and multimedia presented

within electronic book (eBook) formats for users who are blind or deaf. The eBook format offers

online and portable access to all manner of traditional print products, including fiction, nonfiction,

textbooks, professional journals, and other content, via personal computer, laptop, library systems,

dedicated devices, and personal digital assistants (PDAs). Educators, trainers, and publishers are

beginning to explore the learning potential of interactive web-based textbooks that include multimedia (audio and video) and study tools such as highlighting, note-taking, bookmarking, and direct

Internet connections to references and other online learning resources. All of these features in the

eBook format hold great promise to enhance and improve access to information for users with

disabilities. Accessible eBooks could offer learners of all ages who are blind or deaf equal and ready

access to trade, text, or scholarly books, training materials, online research libraries, and all manner

of electronically published resources—a major leap forward in leveling the playing field for people

with disabilities at home, at work, and at school. In order to accomplish this, eBook standards and

systems must be designed to facilitate accessible navigation as well as caption and audio description

displays, and eBook materials must be properly formatted for screen readers and/or refreshable

braille displays. eBook content must include ancillary audio and text information to enable navigation, and to make images, audio, and multimedia accessible.
3-54 Technology for Access and Function

Field-Initiated Projects (FIPs)

Massachusetts

Word for Word: Developing an Enhanced Tool for Individuals with

Disabilities

Education Development Center, Inc.

Center for Family, School, and Community

55 Chapel Street

Newton, MA 02458-1060

bfollansbee@edc.org

http://www.edc.org/spk2wrt

Principal Investigator: Robert Follansbee, EdD, 617/969-7100

Public Contact: Fax: 617/969-3440

Project Number: H133G000204

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $149,998; FY 01 $149,996; FY 02 $150,000

Abstract: This project creates, documents, and tests new speech recognition technology. Tasks

include: (1) designing an innovative software product, Word for Word, that addresses the writing

needs of people with a wide range of disabilities by integrating two powerful text entry modes,

speech recognition and word prediction, in an interface based on principles of universal design; (2)

working in collaboration with Don Johnson, Inc., a leading producer of special needs software, on

the manufacture and marketing of this product, based on the prototype; (3) working in collaboration

with a producer of speech recognition software (i.e., Dragon Systems or IBM Corporation) on the

design and implementation of the proposed product based on the prototype; (4) developing materials

to support the use and dissemination of the product; and (5) testing the educational outcomes associated with the use of the product.
Technology for Access and Function 3-55

Field-Initiated Projects (FIPs)

New Jersey

The Use of Virtual Reality Technology for Assessment of Driving Skills

Following Acquired Brain Injury

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

mschultheis@kmrrec.org

http://www.kmrrec.org/KM/npsych/np_lab.html

Principal Investigator: Maria T. Schultheis, PhD

Public Contact: 973/324-3528; Fax: 973/243-6984

Project Number: H133G000073

Start Date: July 1, 2000

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $116,732; FY 01 $144,010; FY 02 $145,781

Abstract: This project develops a virtual reality driving system (VRDS) for the assessment of

driving ability in persons with acquired brain injury (ABI), specifically TBI and stroke, and examines the device’s efficacy and validity. The primary objectives are: (1) to evaluate the concurrent

validity of a virtual reality driving protocol by comparing it to a traditional rehabilitation-hospitalbased driving evaluation; (2) to examine the effects of the addition of complex and challenging

driving factors, including nighttime and traffic congestion, on driving performance within a virtual

reality environment; and (3) to elucidate the effects of demographic and medical factors that may

impede or facilitate driving performance within a virtual reality environment. To achieve the first

and third objectives, approximately 80 participants with ABI are administered both the traditional

hospital-based driving evaluation and the VRDS. To address the second objective and allow comparison and interpretation of VRDS performance, an additional group of 20 age-and-educationmatched, healthy control subjects are administered the VRDS.
3-56 Technology for Access and Function

Field-Initiated Projects (FIPs)

New York

Optimizing Posture, Trunk Control, and Reach of Wheelchair Users

Center for Rehabilitation Technology

Helen Hayes Hospital

Route 9W

West Haverstraw, NY 10993

crthhh@mindspring.com

http://www.helenhayeshospital.org/crt.htm

Principal Investigator: Stephen H. Sprigle, PhD, 845/786-4806

Public Contact: Mary Wootten, 845/786-4995; Fax: 845/786-4875

Project Number: H133G990048

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $149,489; FY 00 $149,489; FY 01 $147,548; FY 02 (No-cost extension

through 6/30/2003)

Abstract: The study’s objective is to improve function via better postural support by developing

clinical guidelines and prototype devices that accommodate to the varying needs for trunk stability

and mobility throughout the day. To meet this objective, the study has two aims: (1) to determine the

effects of posture and postural supports (cushion, backrest height and supports) on the trunk control

and upper extremity function of wheelchair users, and (2) to determine if optimizing back height

and cushion type permit people to sit with an erect posture without hindering function. For wheelchair users, balancing sufficient trunk support with adequate trunk mobility has important functional

and medical consequences. Better understanding of the posture- function relationship and improved

design concepts are needed to improve trunk control of wheelchair users. Improved control permits

stability during activities of daily living while not hindering function by restricting mobility.
Technology for Access and Function 3-57

Field-Initiated Projects (FIPs)

North Carolina

ABC-Link: A Web-Based Literacy Assessment Tool for Students with

Significant Disabilities

University of North Carolina at Chapel Hill

Allied Health Sciences

CB# 7335, TR48

Chapel Hill, NC 27599-7335

Karen_Erickson@med.unc.edu

Principal Investigator: Karen Erickson, PhD

Public Contact: 919/966-8828; Fax: 919/843-3250

Project Number: H133G020133

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 02 $149,733

Abstract: This development project is designed to create a web-based assessment tool, ABC-Link,

that provides accessible reading assessment tasks via an innovative interface that simultaneously

supports students with severe speech and physical impairments (SSPI) and the adults who assess

them. Through its use of state-of- the-art technology, ABC-Link is an interactive site that: (1) guides

the assessment as it progresses based on a model of behavioral and test-administration efficiency, (2)

feeds the assessment results back to an expert team for interpretation, (3) guides the adult in conducting further assessment as necessary, and (4) provides a suggested plan of intervention.
3-58 Technology for Access and Function

Field-Initiated Projects (FIPs)

North Carolina

Promoting the Practice of Universal Design

North Carolina State University School of Design

Center for Universal Design

219 Oberlin Road

Box 8613

Raleigh, NC 27695-8613

molly_story@ncsu.edu

http://www.design.ncsu.edu/cud

Principal Investigator: Molly Story

Public Contact: 303/699-8133; Fax: 303/699-4703

Project Number: H133G80060

Start Date: June 1, 1998

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 98 $124,970; FY 99 $124,955; FY 00 $124,993; FY 01 (No-cost extension

through 12/31/2002)

Abstract: This project promotes the practice of universal design by developing and implementing a

self-supporting product design evaluation and marketing program that responds to consumer and

industry needs. Universal design is the design of products and environments that are usable, to the

greatest extent possible, by everyone regardless of their age or ability. The critical next step toward

increasing the practice of universal design is adoption and application of its principles both by

consumers and by industry. The three objectives of this project are to improve consumers’ ability to

recognize universal design, to improve designers’ ability to meet the needs of a diverse consumer

base, and to recognize and support industry efforts to market universal design successfully. Ways

these objectives are achieved through this project include: (1) developing a set of performance

measures that reflect the Principles of Universal Design, (2) confirming the reliability of these

measures and pilot testing the evaluation program, (3) developing a plan of self-support for the

universal design evaluation program, and (4) disseminating the results to appropriate audiences. The

project develops a sound universal design program based on information gathered directly from

future users—consumers, designers, and marketers—as well as the universal design research community.
Technology for Access and Function 3-59

Field-Initiated Projects (FIPs)

Oregon

Information Technology Access for Adults with Cognitive Disabilities:

Participatory Development of a Model for Software Accessibility,

Training, and Support

Eugene Research Institute

132 East Broadway, Suite 747

Eugene, OR 97401

tkeating@eugeneresearch.org

http://www.eugeneresearch.org

Principal Investigator: Thomas Keating, PhD

Public Contact: 541/342-3763; Fax: 541/342-4310

Project Number: H133G010162

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $149,996; FY 02 $149,994

Abstract: This project improves IT access for persons with significant cognitive disabilities through

participatory development of a model incorporating accessible life skills software, effective consumer training, and innovative methods for ongoing technical support. Many persons with significant cognitive disabilities are excluded from the benefits of IT because software interfaces are too

complex, the content is not relevant to their life management requirements, and not enough is known

about their training and technical support needs. This project builds on previous efforts in development of life skills software to produce a field-tested and expanded array of applications along with a

replicable model for training and technical support in home, community, and educational settings.

Based on the project’s participatory development approach, persons with cognitive disabilities are

integrally involved in research, development, and dissemination activities.
3-60 Technology for Access and Function

Field-Initiated Projects (FIPs)

Pennsylvania

The Efficacy of Computer and Sense Wear Technologies for Promoting

Health in Adults with Fibromyalgia: A Randomized Clinical Trial

University of Pittsburgh

5012 Forbes Tower

Pittsburgh, PA 15260

jcr@pitt.edu

Principal Investigator: Joan Rogers, PhD; Margo Holm, PhD

Public Contact: Joan Rogers, 412/383-6621; Fax: 412/383-6613

Project Number: H133G020159

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $149,996

Abstract: This study uses a cognitive-behavioral intervention to facilitate adoption of a wellness

lifestyle in people with fibromyalgia. Specifically, researchers test the efficacy of an Internet-based

health promotion computer program used in conjunction with a wearable sensor (SenseWearTM) for

developing a wellness lifestyle and improving the quality of life of adults with fibromyalgia. Consumers are assisted in: (1) establishing goals in the areas of physical activity, nutrition, participation

in meaningful, productive activities, sleep, stress- reducing activities, and emotional state; (2)

monitoring progress toward established goals; and (3) assessing the relationship between these areas

in one’s daily life. In addition, based on consumer input, the program offers suggestions for developing a wellness lifestyle. SenseWearTM provides objective data about activity level and stress level

for consumers to use in combination with the self-assessment data provided by the Internet program.
Technology for Access and Function 3-61

Field-Initiated Projects (FIPs)

Tennessee

Factors Affecting Directional Hearing Aid Performance in Children

Vanderbilt University School of Medicine

Vanderbilt Bill Wilkerson Center for Otolaryngology and Communication Sciences

1114 - 19th Avenue South

Nashville, TN 37212

todd.a.ricketts@vanderbilt.edu

Principal Investigator: Todd A. Ricketts, PhD

Public Contact: 615/936-5258; Fax: 615/936-5013

Project Number: H133G020097

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $149,576

Abstract: This project investigates quantification of the angular position of children’s heads in

classroom environments and measurements of speech understanding and classroom performance in

environments that simulate the most common listening situations children experience. Directional

hearing aids represent one of the few technologies that have the potential to positively impact

children’s speech understanding in classroom environments without requiring hardware external to

the child. These instruments work by reducing amplification for sounds arriving from behind the

child, relative to that provided for sounds arriving from the front. Therefore the intensity level

delivered to a child’s ear for sound sources of interest will be greater than that of other sounds, if the

assumption is made that the child will face the sound source of interest. Unfortunately, the angle at

which children position their heads in classroom environments is unknown. In addition, the magnitude of improvement in speech intelligibility and classroom performance afforded by directional

hearing aids in comparison to their traditional, omnidirectional counterparts in real classroom

environments is unknown.
3-62 Technology for Access and Function

Field-Initiated Projects (FIPs)

Virginia

The Braille Power Reader Program

Science Applications International Corporation

4001 Fairfax Drive, Suite 450

Arlington, VA 22203

hintond@saic.com

Principal Investigator: Daniel E. Hinton

Public Contact: 703/248-7717; Fax: 703/522-6006

Project Number: H133G010028

Start Date: August 1, 2001

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $149,839; FY 02 $149,565

Abstract: This project develops hardware and software that provides people who are deaf-blind or

blind with access to much of the digital media and technology that is available to sighted people in

academic and employment environments. Development efforts include both newly designed hardware and software and improvements on legacy products previously designed by Science Applications International Corporation (SAIC) and Tactilics. These products integrate enhanced hardware

and software and provide 40-character electronic braille access to computers and all forms of IT.

Development of the braille Reader system is initially focused on the needs of people who are deafblind because of the close relationship between SAIC and the Helen Keller National Center

(HKNC), but the display technology is also important to people who are only blind. The teaming

arrangement of SAIC, Tactilics, and HKNC assures that the needs of all people who may benefit

from using the system—blind and deaf-blind—are met.
Technology for Access and Function 3-63

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Arizona

Development of a Collapsible Folding Manual Wheelchair

Three Rivers Holding, LLC

1826 West Broadway Road, Suite 43

Mesa, AZ 85202

david@3rivers.com

http://www.3rivers.com

Principal Investigator: Chris Willems

Public Contact: David Boninger, 480/833-1829

Project Number: H133S020103

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $74,950

Abstract: This project creates and tests a prototype of a compact, forward-folding, ultra-light

manual wheelchair. This wheelchair maximizes mobility in a variety of environments and eases the

demands of travel on wheelchair users. The wheelchair improves access to and maneuverability in

narrow environs such as those encountered in compact dwellings, offices, restroom facilities, and

transportation means. The innovative design enables the wheelchair to fit down the aisle of airplanes, and be collapsed and stowed in the overhead compartment. It is more easily placed in the

trunk of a car than standard wheelchairs. The wheelchair is designed with an adjustable axle, adjustable backrest and seat angle, a suspension element, and a rigid frame environment. The prototype is

tested to insure that: (1) its dimensions meet targeted space constraints, (2) it meets or exceeds

currently approved ANSI/RESNA Standards, and (3) it performs equivalently or better than other

comparable manual wheelchairs on ANSI/RESNA tests.
3-64 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

Arkansas

Absolute Head Pointing for Accessing Assistive Devices

InvoTek, Inc.

1026 Riverview Drive

Alma, AR 72921

tjakobs@invotek.org

http://www.invotek.org

Principal Investigator: Thomas Jakobs (InvoTek); David Beukelman (University of NebraskaLincoln), 479/632-4166 (Jakobs); 402/472-5463 (Beukelman)

Public Contact: Fax: 479/632-6457

Project Number: H133S020106

Start Date: October 15, 2002

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $75,000

Abstract: This research investigates the feasibility of a new “absolute” head-pointing strategy for

people who require an assistive device to manipulate a computer cursor. This “absolute” system

links the position of a computer cursor to the direction the user’s head is pointing, and stays aligned

with the user’s head regardless of repositioning movements. This system enables a user to guide a

cursor by aiming his or her head at a desired target location, potentially simplifying the task of

learning and utilizing such a system. The design takes advantage of new, low-cost, infrared cameras,

and requires only three passive sensors to be attached to the user.
Technology for Access and Function 3-65

Small Business Innovative Research (SBIR), Phase I

California

Assessing, Teaching, and Testing Young Children with Disabilities

Soft Touch/kidTECH, Inc.

4300 Stine Road, Suite 401

Bakersfield, CA 93313-2352

libidabe@kern.org

Principal Investigator: Linda Bidabe

Public Contact: 661/396-8676; Fax: 661/396-8760

Project Number: H133S020148

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 02 $75,000

Abstract: This project examines the feasibility of creating a suite of coordinated software programs

designed specifically for children with disabilities. The programs assess sensory preferences, provide a system for acquiring new information, teach children to take tests, and test knowledge. They

have a central data collection system to ensure that the optimal stimulation, feedback, task, and

content are presented to the child. The programs have a choice of using the provided content or

importing graphics and sounds to match the child’s interest or curriculum.
3-66 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

California

Personal Digital Memories for Individuals with Memory and Cognitive

Disabilities

Photozig, Inc.

P.O. Box 10024

San Jose, CA 95157

info@photozig.com

http://www.photozig.com

Principal Investigator: Bruno Kajiyama

Public Contact: 408/568-0143; Fax: 253/369-5776

Project Number: H133S020030

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $74,960

Abstract: This project develops a computer program that enables individuals with memory and

cognitive disabilities to preserve and access their personal digital memories, helping them improve

their performance in learning, memorizing, social interaction, decision making, and integration with

their family and community. The program allows people with cognitive disabilities to store, organize, access, display, print, and share their personal digital memories as personal digital photos.

Users can take digital photos of objects and situations they want to remember and transfer the photos

to the computer easily. Computer-assisted instructions assist users in manipulating their digital

memories. Web pages with their memories can be automatically generated, posted to the web, or

downloaded from the Internet by the program, helping to increase the participation of family and

friends in their lives and enhancing their social interaction with the community.
Technology for Access and Function 3-67

Small Business Innovative Research (SBIR), Phase I

Colorado

Pocket Money Coach: A Portable Money Management System to

Facilitate Community Access for Individuals with Mental Retardation

AbleLink Technologies, Inc.

528 North Tejon Street, Suite 100

Colorado Springs, CO 80903-1158

dan@ablelinktech.com

http://www.ablelinktech.com

Principal Investigator: Daniel K. Davies

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S020013

Start Date: September 1, 2002

Length: 6 months

NIDRR Officer: David Malouf

NIDRR Funding: FY 02 $74,999

Abstract: This project develops and field-tests Pocket Money Coach, a portable system for assisting

individuals with mental retardation with money-related tasks necessary for independent living and

community access. The project develops requirements for the system, designs and builds a software

prototype, and conducts a pilot study to evaluate the utility of the system for improving independence and self-determination in personal money management for individuals with mental retardation. Independent living for individuals with mental retardation depends on many factors including,

but not limited to, the extent of the cognitive limitation and the effectiveness of teaching skills

necessary for independent living. Money management is one of the most difficult skills for individuals with mental retardation to master, and attainment of the skill is key to independent living. Inability to perform basic living skills, such as money management, can be a crucial factor for not achieving greater independence.
3-68 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

Colorado

Pocket Accessible Communication Enabler (Pocket ACE): Providing

Access to Palmtop Computer Wireless Communication Technologies

for Individuals with Mental Retardation

AbleLink Technologies, Inc.

528 North Tejon Street, Suite 100

Colorado Springs, CO 80903-1158

steve@assess.net

http://www.ablelinktech.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S020010

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $74,996

Abstract: This project involves the design, development, and evaluation of the Pocket Accessible

Communication Enabler (ACE). Pocket ACE is a multimedia software application designed for

operation on Pocket PC Phone Edition palmtop computers to provide a format for independent

access to cell phone technology and wireless email for students and adults with mental retardation.

Many individuals with mental retardation cannot use telephones due to deficits in literacy, numerical

comprehension, and complexity of telephone interfaces, especially in regard to wireless cell phones.

The recent development of smart phone technology via palmtop computers provides an opportunity

to make cell phones, emergency assistance, and wireless email communications accessible to this

population.
Technology for Access and Function 3-69

Small Business Innovative Research (SBIR), Phase I

Colorado

SafetyNet: Supported Independence and Safety for People with

Cognitive Disabilities

CreateAbility Concepts, Inc.

8007 Hillsboro Court

Fort Collins, CO 80525

stephenmsutter@aol.com

http://www.createabilityinc.com

Principal Investigator: Stephen M. Sutter

Public Contact: 970/391-8843; Fax: 970/635-0049

Project Number: H133S020149

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $75,000

Abstract: This project researches and develops natural support mechanisms for people with severe

cognitive disabilities that facilitate independent living, without compromising safety. It demonstrates

the technical merit, feasibility, and cost efficiency of combining state-of-the-art, portable wireless

technology, Internet services, and sensor technology with an innovative approach to develop the first

system designed specifically for this audience that has the ability to detect the status of specific

factors in the environment and then dynamically adjust the delivery of task prompts to properly

coach the individual with a cognitive disability based on these factors. This greatly facilitates freedom and independence without compromising safety. Specific objectives include: (1) determining

the end user requirements, (2) developing a prototype of the SafetyNet system, and (3) performing a

usability analysis with actual users.
3-70 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

Colorado

VCAT On-Demand Transcription Services for Individuals Who Are

Deaf or Hard of Hearing

CreateAbility Concepts, Inc.

8007 Hillsboro Court

Fort Collins, CO 80525

stephenmsutter@aol.com

http://www.createabilityinc.com

Principal Investigator: Stephen M. Sutter

Public Contact: 970/391-8843; Fax: 970/635-0049

Project Number: H133S020155

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $75,000

Abstract: Portable wireless technology offers promising new approaches for the delivery of transcription services for individuals who are deaf or hard of hearing (HOH). This project demonstrates

the technical merit, feasibility, and cost efficiency of combining commercially available equipment

and wireless services with state-of-the- art software to deliver Virtual Computer Assisted Transcription (VCAT) services. A companion, web-based scheduling system connects the end user with a

nation-wide pool of captionists and voice writers, maximizing the flexibility and availability of

transcription services, independent of location. Specific objectives for this project are: (1) determining end user requirements, (2) developing the prototype software and web site, and (3) performing a

usability analysis with actual users and transcription service providers.
Technology for Access and Function 3-71

Small Business Innovative Research (SBIR), Phase I

Florida

Emergency Preparedness Training Software with Universal Access

Vcom3D, Inc.

3452 Lake Lynda Drive, Suite 260

Orlando, FL 32817

ambere@vcom3d.com

http://www.vcom3d.com

Principal Investigator: Amber Emery

Public Contact: 407/737-7310, ext. 117; Fax: 407/737-6821

Project Number: H133S020076

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $74,830

Abstract: This project develops a web-based software program that assists people who are deaf or

hard of hearing in learning self-advocacy and survival skills for life threatening situations. The

software uses 3D animated signing characters employing SigningAvatarTM technology in an interactive virtual reality environment. Effectiveness and user acceptance is evaluated in school environments.
3-72 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

Florida

SignSync: Software Tools for Synchronizing Sign Language Access to

Digital Multimedia

Vcom3D, Inc.

3452 Lake Lynda Drive, Suite 260

Orlando, FL 32817

dannyr@vcom3d.com

http://www.vcom3d.com

Principal Investigator: Daniel Roush

Public Contact: 407/737-7310, ext. 115; Fax: 407/737-6821

Project Number: H133S020104

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $74,980

Abstract: This project creates a multimedia authoring to that gives people who are deaf or hard of

hearing access to digital multimedia, by combining features of Sign SmithTM Studio software with

Media Access Generator (MAGpie) software. Currently it is technologically feasible to synchronize

and display sign language animations with streaming multimedia, but the process of manually

synchronizing can be overwhelming. As digital multimedia becomes more dynamic, powerful

software tools are needed to make information accessible. Vcom3D’s commercial Sign Smith

SmithTM Studio Authoring Tool provides a practical way to embed 3D animated signing characters

on static web pages, and the Corporation for Public Broadcasting/WGBH National Center for

Accessible Media’s software, Media Access Generator (MAGpie), provides a practical way to add

text captions to multimedia. By integrating and extending features of the two products, this project

develops a powerful tool to automate synchronization and publish content integrated with accessibility options of both captioning and sign language.
Technology for Access and Function 3-73

Small Business Innovative Research (SBIR), Phase I

Illinois

Wearable Computing System to Promote Total Knee Arthroplasties

(TKA) Recovery

Garrett Technologies, Inc.

5225 Touhy Avenue

Skokie, IL 60077

garrett.technologies@att.net

Principal Investigator: Michael C. Garrett

Public Contact: 847/561-3410

Project Number: H133S020020

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $75,000

Abstract: This project develops a system that consists of a wearable computer containing a touch

pad for user input, an LCD providing visual feedback, a tone generator providing audio feedback,

and a knee orthosis with an innovative goniometer that measures the flexion and extension of the

knee joint. The system provides positive feedback to the patient by letting them know when they

have achieved specified range of motion goals. It can provide negative feedback by reminding

patients that they need to perform a certain task within a given time frame. The system is capable of

storing data for review by the treatment team. Finally, the system can monitor the patient’s knee

angle for extended periods, thus providing valuable information about the patient’s activity to the

treatment team.
3-74 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

Maryland

Integrating TTYs into PDAs

IDRT, Inc.

11323 Amherst Avenue

Silver Spring, MD 20902

idrt2@aol.com

Principal Investigator: Carl J. Jensema, PhD

Public Contact: 301/942-4326; Fax: 301/942-4439

Project Number: H133S020049

Start Date: September 1, 2002

Length: 6 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $74,996

Abstract: This project takes the concept of a software TTY a step further, to design a new software

TTY package specifically for use in a personal digital assistant (PDA). The text telephone system

commonly used by U.S. residents who are deaf relies on five-bit Baudot code transmitted at 45-

baud. Until recently, this required expensive special TTY equipment, but the situation changed with

the release of myTTY, a totally software-based TTY. myTTY is inexpensive and allows a PC desktop or laptop computer to communicate with a Baudot TTY. The current project provides a true

pocket-sized TTY and expands the telecommunications capability of people who are deaf with a

software TTY in a PDA running under the Windows CE operating system. The project also explores

the use of TTY software with other operating systems and the creation of a TTY in a PDA connected

to a cellular telephone.
Technology for Access and Function 3-75

Small Business Innovative Research (SBIR), Phase I

Maryland

Development of CD-ROM-Based Cued Speech Instructional Materials

IDRT, Inc.

11323 Amherst Avenue

Silver Spring, MD 20902

idrt2@aol.com

Principal Investigator: Angela Bednarczyk, PhD

Public Contact: 301/942-4326; Fax: 301/942-4439

Project Number: H133S020048

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $74,995

Abstract: This project develops a self-taught, self-paced, interactive computer program to teach

cued speech, with a basic first-draft of a cued speech instructional computer program and subsequent materials in the current project phase. Children who are deaf or hard of hearing often struggle

to establish communication with their hearing parents, relatives, friends, classmates, and others. One

of the best ways to establish such communication with the least training is through cued speech.

Unfortunately, there are relatively few self-taught cued speech instructional materials available and

almost nothing is available on a CD-ROM for computer administration. The resulting instructional

program is to be distributed on a CD-ROM.
3-76 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

Massachusetts

Development of a High Bandwidth Individualized Wireless Network

Talking Lights, LLC

28 Constitution Road

Boston, MA 02129

al@talking-lights.com

http://www.talking-lights.com

Principal Investigator: Al-Thaddeus Avestruz

Public Contact: Neil Lupton, 617/242-0050; Fax: 617/242-0046

Project Number: H133S020043

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 02 $75,000

Abstract: This project researches the feasibility of a high bandwidth individualized wireless network that is personalized to maximize flexibility and capacity for individual users and minimize

interference, crosstalk, and extraneous information. The system is developed in connection with

experts on deafness and visual impairments. It is evaluated and tested in schools specializing in

education of students with disabilities.
Technology for Access and Function 3-77

Small Business Innovative Research (SBIR), Phase I

Massachusetts

More Accurate Voice Control Systems for the Disabled Using

Improved Speech Recognition

Amazability, Inc.

14 Lorraine Circle

Waban, MA 02468-1466

amazability@rcn.com

Principal Investigator: Kenneth R. Ingham, PhD

Public Contact: 617/795-0134

Project Number: H133S020107

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 02 $74,200

Abstract: This project designs and tests interface software that, in combination with an innovative

speech recognition system, can improve current recognition maxima for non-spontaneous utterances

from approximately 85 percent to approaching 100 percent. The project tests statistical and grammar-driven recognition models in a series of bench trials designed to quantify accuracy, speed of

use, and overall productivity as compared to existing adaptive technology. Bringing accuracy as

close as possible to 100 percent should allow the software to overcome a major obstacle in the use of

speech recognition by people who are blind or who have other disabilities: the tendency to become

lost and unable to complete computer-assisted tasks. A secondary goal is research into the development of a closely coupled series of resets integrated with applications designed from the ground up

for speech input/output, intended to support command and control and to eliminate the “getting lost”

problem.
3-78 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

Michigan

Development of a Portable Reading Device for the Blind

Omegaware, Inc.

5475 West Grand Blanc Road

Swartz Creek, MI 48473-9421

mitchell@mwci.net

Principal Investigator: Brian Mitchell, PhD

Public Contact: 734/973-1177; Fax: 734/973-1249

Project Number: H133S020071

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 02 $75,000

Abstract: This project develops a portable reading device that allows people who are blind or who

have visual impairments to perform routine reading tasks. Such a device meets a desperate need for

individuals who are severely limited by current reading methods. It empowers these individuals by

providing on-demand access to everyday reading materials that they encounter in their community,

workplace, and educational settings. It helps to restore independence by providing access to information needed to exist in modern society.
Technology for Access and Function 3-79

Small Business Innovative Research (SBIR), Phase I

New York

Development of an Authoring Tool to Allow Teachers to Create AudioTactile Materials for Blind or Visually Impaired Students

Touch Graphics

140 Jackson Street

Brooklyn, NY 11211-2462

sl@touchgraphics.com

http://www.touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 718/383-8265; Fax: 718/389-1541

Project Number: H133S020147

Start Date: September 30, 2002

Length: 6 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 02 $74,082

Abstract: This project conceptualizes, implements, and evaluates a prototypical authoring tool that

allows teachers of individuals who are blind or who have visually impairments to create their own

customized audio/tactile educational materials. The authoring tool creates embossed sheets that

students mount on a touch- sensitive tablet connected to a computer. They then interact by pressing

regions on the tactile surface to instigate audio responses.
3-80 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

New York

Diagnostica K-12: A school-centered collaborative framework for

mental health monitoring

Medicine Rules Corporation

2 Constance Court

East Setauket, NY 11733

agartner@earthlink.net

Principal Investigator: Joseph Gartner, MD

Public Contact: 631/334-5395; Fax: 208/730-3473

Project Number: H133S020032

Start Date: September 15, 2002

Length: 6 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $74,948

Abstract: This project develops an application framework that allows schools, family members, and

community professionals to collaborate in identifying mental health conditions that impact a child’s

education. Identification of mental health impairment in children and adolescents is critical for

evaluation of learning problems in school. Using a standard knowledge framework, the Diagnostic

and Statistical Manual of Mental Disorders (DSM-IV), and any DSM-IV-derived information

source, the application enables rapid collection, integration, and analysis of mental health information from multiple informants. This project focuses on the development of a prototype capable of

collecting DSM-IV symptom information from families, school personnel, and community providers, and processing the data to provide impairment information for DSM-IV categories, diagnoses,

and symptoms. Usability of the system is demonstrated with simulated data and by feedback from

local regular and special education providers.
Technology for Access and Function 3-81

Small Business Innovative Research (SBIR), Phase I

Pennsylvania

Developing a Versatile, Affordable, Wheelchair-Mounted Robotic Arm

Based on the Arlyn FeederBot Design

Arlyn Toolworks

155 Shughart Road

Carlisle, PA 17013-9228

osbornej@epix.net

http://www.arlyntoolworks.com

Principal Investigator: Joseph Osborne

Public Contact: 717/249-7729; Fax: 717/249-0774

Project Number: H133S020121

Start Date: September 30, 2002

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $74,096

Abstract: This project modifies the existing prototype Arlyn FeederBot and uses it as a test bed to

investigate the use of that design as a general-purpose wheelchair-mounted robot arm. Researchers

develop methods of handling objects in structured and unstructured environments and incorporate

the ability to use many different control methods. The resulting product permits many people with

severe paralysis to have greater independence and quality of life and to become employed or better

employed.
3-82 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

Pennsylvania

The Next Generation of Audio-Based Assistive Technology: An

Instantaneous Customizable Audio Pegging System

TranXecute, Inc.

1335 North Avignon Drive

Gladwyne, PA 19035-1043

chang_leonard@hotmail.com

Principal Investigator: Leonard Chang

Public Contact: 610/527-9288; Fax: 610/527-6304

Project Number: H133S020027

Start Date: September 30, 2002

Length: 6 months

NIDRR Officer: William Halloran

NIDRR Funding: FY 02 $74,750

Abstract: This project develops an Audio Pegging System that not only addresses many of the

limitations of current audio-based assistive technologies, but also provides a comprehensive tool for

students with disabilities to use in an educational setting. This Audio Pegging System allows for the

lacing of an audio source to its corresponding transcript or vice versa, using a human voice rather

than a computer synthesizer, and enables the user to click on any part of the text and hear its matching audio instantly. It is akin to a word processor with audio processing capabilities, allowing the

user to create a customized text-and-audio-laced file which can be searched, cut and pasted, and emailed just like a Word document.
Technology for Access and Function 3-83

Small Business Innovative Research (SBIR), Phase I

Pennsylvania

Simplifying Automated Braille Music Production: Integrating the

GOODFEEL Braille Music Translator with Mainstream Software

Dancing Dots Braille Music Technology, LP

1754 Quarry Lane

P.O. Box 927

Valley Forge, PA 19482-0927

bill@dancingdots.com

http://www.dancingdots.com

Principal Investigator: William R. McCann

Public Contact: 610/783-6692; Fax: 610/783-6732

Project Number: H133S020081

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 02 $75,000

Abstract: This project improves the GOODFEEL Braille music translator. While GOODFEEL

produces high-quality music braille its usability, technical complexity and the training time should

be improved so music educators or vision professionals have more motivation to employ it to benefit

students of music who are blind. The following will be addressed: (1) making the process of preparing music files to be transcribed less labor-intensive, (2) making the interface and its relationship to

mainstream music software more useful to overworked or unsophisticated potential users, (3) adding

a proofing feature that delivers a description of each braille music character created so sighted nonspecialists can confidently instruct beginners new to braille music reading, and (4) making editing

functions accessible to users who are blind.
3-84 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

Texas

Nemeth Math to LATEX Backtranslator System

Logical Software Solutions

3801 West Spring Creek Parkway, #1312

Plano, TX 75023

deepa_gopal@hotmail.com

Principal Investigator: Deepa Gopal

Public Contact: 469/467-6569

Project Number: H133S020130

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $75,000

Abstract: This project conducts research to enable the development of a commercial-quality PCbased system for automatically translating mathematical expressions encoded in the Nemeth Math

Braille notation to LATEX, a typesetting software program. The system greatly facilitates communication between students, scientists, and engineers with visual impairments and with their sighted

instructors and colleagues. Translation of Nemeth Math Braille to LATEX is known to be a difficult

undertaking; this project applies novel approaches of denotational semantics, logic programming,

and definite clause grammar to translation problems. The goal is to show that this technology is

powerful enough to cover all of Nemeth Math Braille.
Technology for Access and Function 3-85

Small Business Innovative Research (SBIR), Phase I

Utah

Practical Force Feedback System for Upper Limb Prosthesis Users

Motion Control, Inc.

2401 South 1070 West, Suite B

Salt Lake City, UT 84119-1555

harold@utaharm.com

http://www.utaharm.com

Principal Investigator: Harold H. Sears, PhD

Public Contact: 801/978-2622; 888/696-2767; Fax: 801/978-0848

Project Number: H133S020006

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $75,000

Abstract: This project develops a practical grip-force feedback system for upper-limb prosthesis

users that enables wearers to sense the grip force of their terminal device (TD). Prototypes of a grip

force sensor and a method of direct force feedback to the wearer are developed, as well as a method

for gravity compensation of a body-powered version of the Utah Arm. Previous experiments have

demonstrated that force feedback can improve the prosthesis wearer’s control of an electric TD. By

developing a practical system to implement force feedback into a myoelectric hand, the next generation of myoelectric hand wearers will potentially have greatly improved control, more natural

sensation of their prehension, and reduced dependence on visual feedback to moderate grip force.

Growing use of myoelectric devices by amputees is causing growth in the prosthetics market. Adding a practical feedback system will greatly enhance the prostheses for this population.
3-86 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

Virginia

Internet-Based Beginning Sign Language Course for Hearing Adult

Learners

Ready! Set! Sign! ! LLC

4319 South 36th Street

Arlington, VA 22206-1809

contact_us@readysetsign.com

http://www.readysetsign.com

Principal Investigator: Daniel D. Burch, PhD

Public Contact: Martin Noretsky, 703/820-5730; Fax: 703/820-0022

Project Number: H133S020051

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Ramon Rodriguez

NIDRR Funding: FY 02 $75,000

Abstract: This project determines the feasibility of an Internet-based beginning Sign Language

course for hearing adult learners using Ready! Set! Sign! content, which is based on research demonstrating the effectiveness of using the iconic characteristics of signs as a major instructional

teaching tool. This study examines the course design and development as a continuous effort to

deliver the necessary instructional content to the learner based upon the technological realities faced

by learning constituents: users with 56k dialup modems, users with broadband cable, and users of

future technology similar to Internet 2 functionality. These technologies and media can improve

communication between individuals with disabilities and their non- disabled peers, including coworkers, teachers, and employers/supervisors.
Technology for Access and Function 3-87

Small Business Innovative Research (SBIR), Phase I

Virginia

Development of the Remote Access Screen Reader Architecture Math

System (RA SRAMS)

Automated Functions, Inc.

7700 Leesburg Pike, Suite 420

Falls Church, VA 22043

rmorford@concentric.net

Principal Investigator: Ronald A. Morford

Public Contact: 703/883-9797; Fax: 703/883-9798

Project Number: H133S020108

Start Date: September 1, 2002

Length: 6 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $75,000

Abstract: The Remote Access Screen Reader Architecture Math System (RA SRAMS) is to design,

develop, and test a computer based system that enables remote access to math by students and

teachers. RA SRAMS uses successful screen reading architecture to enable students with visual

impairments to independently manipulate math expressions to solve math problems. Access is via a

network, so the student and teacher may be at different locations when using RA SRAMS. Many

students with visual impairments have difficulty learning mathematics, and because the technical

skills required by many professions are increasing, a lack of higher math skills limits educational

and job opportunities for many people with visual impairment.
3-88 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I

West Virginia

A Real-Time Spatial Environment Navigation and Description System

for the Visually Impaired

VRGIS Corporation

117 Cobblestone Circle

Morgantown, WV 26505-2764

scot.refsland@vrgis.com

http://www.vrgis.com

Principal Investigator: Scot Thrane Refsland, PhD

Public Contact: 304/288-5313; Fax: 304/599-0888

Project Number: H133S020003

Start Date: September 30, 2002

Length: 6 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 02 $75,000

Abstract: This project tests the feasibility of an enhanced Location-Based Services system used by

people with visual impairments for navigation and description assistance of a physical environment

through an innovative, real-time, wearable, assistive technology. The system is an environment

description tool that delivers critical information at the ‘point-of need,’ providing instant description

and navigational data about a location. It enhances traditional GPS, augmented reality, and wireless

technologies to create a tightly coupled relationship between the user, location, and contextually

relevant environmental information. Such data includes key building information, entrances and

exits, number of floors, stairs, and location of pertinent features like elevators, doors, restrooms,

reception areas, and telephones. Through lightweight wearable computing technologies, environmental data intelligently finds and adapts itself to the user, instead of the user having to adapt and

find information in obscure locations. Thus, a user is immediately empowered by accessing interactive “mediapoints” virtually and spatially positioned throughout the physical environment, providing

a user-centric organized description and navigational methodology. The technology is based on a

unique, real-time 3D spatial data network system delivering intelligent mediapoints derived from

online databases, sensors, and communications through a multi-user wireless network.
Technology for Access and Function 3-89

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Colorado

QwikClick: An Intelligent Scanning Keyboard That Maximizes the

Capability of Single- Switch Users

CreateAbility Concepts, Inc.

8007 Hillsboro Court

Fort Collins, CO 80525

stephenmsutter@aol.com

http://www.createabilityinc.com

Principal Investigator: Stephen M. Sutter

Public Contact: 970/391-8843; Fax: 970/635-0049

Project Number: ED-01-CO-0122

Start Date: September 17, 2001

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: This project completes Phase I research on the QwikClick intelligent scanning system, a

highly flexible and intelligent scanning keyboard technology that helps single-switch users optimize

their performance and enjoyment in using a personal computer. Several important features and

capabilities are added to the base software to take advantage of physical and cognitive abilities as

well as the preferences of the user. System parameters and display options facilitate the minimization of two conflicting issues: while the population of single-switch users has a wide range of abilities and disabilities, studies have shown that barriers are created rather than minimized when features and sophistication are added. The project also designs and implements a companion product,

QwikClickAdvisor. This environment allows the caregiver to make informed choices when modifying system parameters so the system can be customized for a particular user. QwikClickAdvisor is a

“wizard” type environment that provides: (1) pre-defined templates that customize the system based

on the user’s profile; (2) full control of all programmable system parameters and display options;

and (3) statistical feedback of the user’s performance and recommendations for parameter adjustments for improved performance. Finally, the project includes extended field testing of the system to

evaluate its utility in a range of vocational, educational, and recreational activities.
3-90 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II

Iowa

Gesture Recognition System for Personal Computing Applications

Future of Technology and Health

P.O. Box 1233

Iowa City, IA 52244-1233

research@futh.com

http://www.futh.com/gesture.html

Principal Investigator: Jeffrey B. Bishop, PhD

Public Contact: 319/354-7652; Fax: 561/619-8059

Project Number: ED-01-CO-0124

Start Date: September 17, 2001

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: This project develops a low-cost gesture recognition system that uses existing PC hardware and digital camera hardware to recognize head gestures. The new system recognizes multiple

head and face gestures to access computers, to be used by people with mobility impairments or other

disabilities, including cerebral palsy, ALS, stroke, SCI, and repetitive stress injury. Many people use

alternative input devices rather than the standard keyboard and mouse; the availability of powerful

personal computers and inexpensive digital video cameras create the opportunity to develop a new

type of practical computer interface: gesture recognition. The system is designed to use standard,

low-cost digital video cameras (under $100) and standard personal computers. One application to be

developed is the capability to “surf the web” hands-free using head gestures to navigate web pages,

including selecting and activating desired links. This has the potential to greatly improve the speed

of computer access, filling the gap between switches, speech recognition (which has a number of

disadvantages in work and school settings), and expensive head tracking systems. The technology

could be used to replace or augment existing computer switches (such as those activated by head,

foot, or hand).
Technology for Access and Function 3-91

Small Business Innovative Research (SBIR), Phase II

Maryland

TalkTiles: A Multi-Sensory Language Development Tool and

Communication Aid

Intelligent Automation, Inc.

7519 Standish Place, Suite 200

Rockville, MD 20855

smayhew@i-a-i.com

http://www.i-a-i.com/talktiles

Principal Investigator: Shannon Beltz-Mayhew

Public Contact: 301/294-5230; Fax: 301/294-5201

Project Number: ED-02-R-0012 (3-6)

Start Date: October 1, 2002

Length: 24 months

NIDRR Officer: Jane Hauser

NIDRR Funding: FY 02 $150,000

Abstract: This project develops and field tests a device that serves as a language development tool

for children with speech- and language-related disabilities as well as preliterate children. Through

manipulation of electronically enhanced wooden letter tiles, children experience visual, auditory,

and kinesthetic representations of letters and words. Project objectives include: (1) improve functionality of the Phase I prototype; (2) conduct single case studies to determine whether TalkTiles

promotes letter recognition and/or phonemic awareness in children with autistic spectrum disorder;

(3) design and develop ten fully functional TalkTiles units; (4) conduct field tests to determine

whether TalkTiles promotes letter recognition and/or phonemic awareness among preliterate children more effectively than approaches that are not “multisensory;” and (5) develop demonstration

software to accompany the TalkTiles device. This unique tactile context for language development

addresses the concept that young children connect most strongly with their world through touch.
3-92 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II

New York

Development of an Audio/Tactile Atlas of the World for Use by

Individuals Who Are Blind or Visually Impaired

Touch Graphics

140 Jackson Street

Brooklyn, NY 11211

sl@touchgraphics.com

http://www.touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 718/383-8265; Fax: 718/389-1541

Project Number: ED-01-CO-0125

Start Date: September 1, 2001

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $148,907; FY 02 $148,907

Abstract: This project creates a new and innovative Atlas of the World that is fully accessible to

readers who are blind, who have visual impairments, or who have other print disabilities. The atlas

is an accessory application for the Talking Tactile Tablet created by Touch Graphics, a computer

peripheral device on which raised-line and textured (tactile) plastic overlay sheets can be mounted.

Users press shapes, regions, and icons on the tactile surface to instigate interactions with a humanvoice narrator. A menu system allows the user to select from a number of operational modes that

provide access to a database of sociopolitical and geographical map information. National Geographic Maps provide cartographic content and associated information at no cost to the project, and

act as advisors to the project to ensure that the product meets current standards for print Atlases.
Technology for Access and Function 3-93

Small Business Innovative Research (SBIR), Phase II

New York

Development of an Audio/Tactile Accommodation for Delivery of

Standardized Math Tests to Students Who Are Blind or Visually

Impaired

Touch Graphics

140 Jackson Street

Brooklyn, NY 11211

sl@touchgraphics.com

http://www.touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 718/383-8265; Fax: 718/389-1541

Project Number: ED-01-PO-3667 (3-4)

Start Date: September 1, 2002

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $148,190

Abstract: This project includes the design, implementation, and evaluation of a system for delivering standardized math tests, and other assessments that include references to graphic material, to

individuals who are blind, have a visual impairment, or who have other print disabilities. This

system allows a user to scroll through test items, listen to a trained human-voice narrator read

questions and answer choices, and refer to interactive raised-line and textured (tactile) diagrams.

When the user presses various regions and shapes on these diagrams, the narrator describes the

feature of the drawing or illustration that is touched. The test delivery accommodation also incorporates a talking calculator, a timer, and a database for automatically capturing statistics on student

performance. The system is based on standards already established and proven effective for audiotactile computer applications; it is designed to be used in conjunction with the Talking Tactile

Tablet, a simple, durable, and inexpensive computer peripheral.
3-94 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II

New York

Online Instruction Tools for Teaching Mathematical Problem Solving

to Learning Disabled Students

Learnimation

53 West 90th Street #4

New York, NY 10024

Principal Investigator: Sarah Manning

Project Number: ED-02-R-0012 (3-5)

Start Date: September 30, 2002

Length: 24 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 02 $159,068

Abstract: This project builds a bundled set of web-based validated intervention tools to improve

mathematical problem-solving outcomes of middle school students with learning disabilities. Utilizing instructional strategies proven by educational researchers to be effective in addressing the needs

of students with learning disabilities, this software application focuses on the full set of cognitive

processes, metacognitive activities, and affective factors required to attain proficiency in mathematical problem solving. In order to develop students’ mathematical problem solving skills, interventions designed to address this scope and sequence of skills and abilities is presented within the

context of motivating, life-based animated word problems. The application teaches general problemsolving strategy and explicit cognitive mathematical sub-skills.
Technology for Access and Function 3-95

Small Business Innovative Research (SBIR), Phase II

Utah

Omnidirectional Wheelchair to Greatly Increase Mobility in Vocational

Rehabilitation and Independent Living Daily Activities

Lincoln Laboratories

1946 South 1600 West

College Ward, UT 84339

mel@autonomoussolutions.com

Principal Investigator: Mel Torrie

Public Contact: 435/755-2980; 435/757-5480; Fax: 435/752-0541

Project Number: ED-01-CO-0310

Start Date: September 1, 2001

Length: 24 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: This project develops a prototype omnidirectional wheelchair that is simple, light, inexpensive, and capable of outdoor navigation. Translation and rotation in any direction is accomplished. This retrofit requires only one additional motor and two sensors and effectively overcomes

the obstacles others have had in trying to commercialize this needed capability. This work draws

from the extensive experience the collaborators have had in VR, and in developing omnidirectional

vehicles and control systems.
3-96 Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II

Virginia

A Low-Cost, High-Performance Physical Activity Monitor (PAM)

Barron Associates, Inc.

1160 Pepsi Place, Suite 300

Charlottesville, VA 22901

barron@bainet.com

http://www.barron-associates.com

Principal Investigator: B. Eugene Parker Jr., PhD

Public Contact: 434/973-1215; Fax: 434/973-4686

Project Number: ED-01-CO-0123

Start Date: September 17, 2001

Length: 24 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: This project focuses on health-related physical fitness assessment and physical activity

monitoring. In particular, the team of Barron Associates, Inc. and the University of Virginia work to

develop a miniature, lightweight, low-profile, low-cost, high-performance multifunctional Physical

Activity Monitor (PAM) to collect, store, and analyze translational and rotational motion in children

and other subjects. The system addresses the deficiencies of current commercial activity monitors.

Monitoring of both motion and heart rate allows assessment of health-related physical fitness via

computation of the Energy Expenditure Index in ambulatory children both with and without disabilities. All information collected and stored on the PAM device is uploadable to a PC for off-line data

analysis.
Independent Living and Community Integration

Independent living recognizes that each person has the right to independence through

maximum control over his or her life, based on an ability and opportunity to make

choices in performing everyday activities. These activities include: managing one’s

personal life; participating in community life; fulfilling social roles, such as marriage,

parenthood, employment, and citizenship; sustaining self-determination; and

minimizing physical or psychological dependence on others. Community integration

incorporates ideas of both place and participation, so that a person is physically

located in a community setting, and participates in community activities. Issues of

consumer direction and control also are integral to concepts of community integration.

NIDRR’s research program encourages independent living and community integration

to achieve more successful outcomes for people with disabilities, and it fosters the

development of innovative methods to achieve these outcomes and to measure

achievement.

Contents

Rehabilitation Research and Training Centers (RRTCs) ...................................................................... 2

Disability and Rehabilitation Research Projects ................................................................................ 13

Field-Initiated Projects (FIPs) ............................................................................................................ 14

Small Business Innovative Research (SBIR), Phase I........................................................................ 46

Small Business Innovative Research (SBIR), Phase II ...................................................................... 51

Independent Living and Community Integration 4-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center on Personal Assistance

Services (PAS)

World Institute on Disability

510 - 16th Street, Suite 100

Oakland, CA 94612-1520

mailpas@wid.org

http://www.wid.org

Principal Investigator: Deborah Kaplan, JD

Public Contact: Tom Bleecker, PhD, 510/251-4338 (V); 510/208-9493 (TTY); 510/763- 4100 (V,

main switchboard); Fax: 510/763-4109

Project Number: H133B70008

Start Date: July 1, 1997

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 97 $500,000; FY 98 $500,000; FY 99 $500,000; FY 00 $500,000; FY 01

$500,000; FY 02 (No-cost extension through 9/30/2003)

Abstract: This project furthers the understanding that Personal Assistance Service (PAS) systems

design can promote the economic self-sufficiency, independent living, and full integration of people

of all ages and disabilities into society. The project explores the models, policies, access to, and

outcomes of, personal assistance services, through: (1) gathering perspectives of consumers, program administrators, policy-makers, and personal assistants using a state of the states survey and

database development; (2) a policy study; (3) a study of workplace PAS; and (4) a study on the

conditions to improve the quality and quantity of the Personal Assistant workforce.
4-4 Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Florida

Rehabilitation Research and Training Center on Positive Behavior

Support

University of South Florida

Division of Applied Research and Educational Support (DARES)

Department of Child and Family Studies

13301 Bruce B. Downs Boulevard

Tampa, FL 33612

rrtcpbs@fmhi.usf.edu

http://www.rrtcpbs.org

Principal Investigator: Glen Dunlap, PhD

Public Contact: Teresa White, 813/974-4612; Fax: 813/974-6115

Project Number: H133B980005

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 98 $600,000; FY 99 $600,000; FY 00 $600,000; FY 01 $600,000; FY 02

$600,000

Abstract: This project acquires and disseminates new knowledge to advance the field of behavior

support in school, home, and community settings. Through research and training projects, the Center

increases and enhances the effectiveness of behavior support strategies, expands the applicability of

effective practices to broader and more diverse populations, and addresses the need for effective

training, technical assistance, and widespread dissemination. The three primary research projects:

(1) expand the applicability of effective interventions, (2) increase and enhance the effectiveness of

interventions, and (3) understand and describe the long-term impacts and processes of effective

behavior support. Embedded within these research projects are systematic studies of nonaversive

interventions, etiology and prevention, maintenance, self-management, and functional assessment.

The three primary training projects focus on: (1) in-service and pre-service training, (2) dissemination, and (3) technical assistance. The Center is conducted as a consortium that includes the University of South Florida, the University of Oregon, State University of New York (SUNY) at Stony

Brook, the University of Kansas, the University of California at Santa Barbara, and the University of

California at Hayward.
Independent Living and Community Integration 4-5

Rehabilitation Research and Training Centers (RRTCs)

Florida

Rehabilitation Research and Training Center for Children’s Mental

Health

University of South Florida

Florida Mental Health Institute

13301 Bruce B. Downs Boulevard MHC2335

Tampa, FL 33612-3807

kutash@fmhi.usf.edu

http://rtckids.fmhi.usf.edu

Principal Investigator: Robert Friedman, PhD, 813-974-4640

Public Contact: Krista Kutash, PhD, 813/974-4661 (V); 800/955-8771 (TTY); Fax: 813/974-6257

Project Number: H133B990022

Start Date: September 28, 1999

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 99 $750,000; FY 00 $750,000; FY 01 $875,000; FY 02 $750,000

Other funding: FY 01 $520,000 (Center for Mental Health Services), $198,911 (Children’s Board

of Hillsborough County Florida), $188,932 (Florida Dept. of Children and Families), $131,250

(USDE - OSERS), $37968 (Texas A & M University), $22,500 (Panhandle Area Educational Cooperative), $64, 210 (Other); FY 02 $216,326 (Florida Department of Children and Families),

$169,659 (Florida Department of Education), $150,000 (US Department of Education), $132,124

(Children’s Board of Hillsborough County), $63,750 (NIH/NIDA)

Abstract: This program conducts an integrated set of field research projects, employing multiple

methods to examine policies affecting children with emotional disturbances and their families in

order to enhance the understanding of policy development, its implementation and effects. The

research program builds on an analytic framework for understanding variables related to translation

of policy into community- level actions. The consistency of state-level policy with system-of-care

principles is examined through a series of related studies that address: family perspectives, interagency collaboration, school reform in urban communities, local theories of change and their relationship to services and outcomes, Medicaid managed care and the State Children’s Health Insurance Program, the impact of managed care and system-of-care policies on access to care for children

of color and their families, and development of a new instrument to assess interagency collaboration.

The Center’s dissemination approach includes conferences and meetings, peer-reviewed journal

articles, research briefs, presentations, the world wide web and other electronic media, and technical

assistance. This project participates in the NIDRR Scholars program, providing motivated undergraduates with internship experience in disability research.
4-6 Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Aging with

Developmental Disabilities

University of Illinois/Chicago

Department of Disability and Human Development

College of Applied Health Sciences MC 626

1640 West Roosevelt Road

Chicago, IL 60608-6904

rrtcamr@uic.edu

http://www.uic.edu/orgs/rrtcamr

Principal Investigator: Tamar Heller, PhD

Public Contact: Alan Factor, Associate Director, 800/996-8845 (V); 312/413-1510 (V); 312/413-

0453 (TTY); Fax: 312/996-6942

Project Number: H133B980046

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 98 $699,934; FY 99 $699,987; FY 00 $699,985; FY 01 $699,983; FY 02

$699,934

Abstract: This project promotes the independence, productivity, community participation, full

citizenship, and self-determination of older adults with intellectual disabilities (mental retardation)

and related developmental disabilities (I/DD) through a coordinated program of research, training,

technical assistance, and dissemination activities. The research program aims to increase knowledge

about the age- related physical and psychosocial changes older adults with I/DD and their family

experience. It examines how these changes affect their ability to function in the community, including home, work, and leisure settings. The research program also aims to increase the effectiveness of

innovative approaches, public policies, and program interventions that provide needed supports, and

to identify best practices and public policies that promote the successful aging of these adults and

their families. Current research priorities include promoting health and wellness, understanding

women’s health issues, understanding family (including sibling) caregiving roles across residential

settings, developing effective approaches that support individuals and their families in making future

plans, identifying gaps in age-related health care and employment resources, and using assistive

technologies and universal design to maintain employability and enhance functioning in the community. The project’s Clearinghouse on Aging and Developmental Disabilities, ADD/VANTAGE newsletter, and web site disseminate its research findings and their practical applications to an international audience of researchers, service providers, administrators and policy-makers, students,

families, people with disabilities, and the general public.
Independent Living and Community Integration 4-7

Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Full Participation in

Independent Living

University of Kansas Center for Research, Inc.

1000 Sunnyside Avenue

4089 Dole

Lawrence, KS 66045

rtcfpil@ku.edu

http://rtcfpil.org

Principal Investigator: Glen W. White, PhD, 785/864-0590

Public Contact: 785/864-4095 (V); 785/864-0706 (TTY); Fax: 785/864-5063

Project Number: H133B000500

Start Date: January 1, 2001

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $499,876; FY 02 $661,864

Other funding: FY 02 $299,999 (NIDRR Dissemination & Utilization)

Abstract: Through research, training, and dissemination, this project makes available personenvironment strategies that enable full participation in society by persons with disabilities from

diverse cultures, varying socioeconomic strata, and emerging disability populations. This mission is

implemented through multiple research and training activities that are influenced by independent

living (IL) philosophy and values; for example, participatory action research is emphasized, in

which consumers take an active role throughout the research process. The RRTC develops, tests, and

uses measurement tools to investigate the interactional relationship between personal and environmental factors and their effects on full participation in IL by the designated populations. Based on

the project’s Analytical Research Framework, the four core areas of intervention development and

testing include: (1) increasing the knowledge base about the emerging universe of disability, (2)

community participation and wellness, (3) cultural IL accommodations, and (4) personal and systems advocacy. This project participates in the NIDRR Scholars program, providing motivated

undergraduates with internship experience in disability research.
4-8 Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center in Rehabilitation of

Persons with Long- Term Mental Illness

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

mfarkas@bu.edu; erogers@bu.edu

http://www.bu.edu/cpr/research/rtc2004/

Principal Investigator: Marianne Farkas, ScD; E. Sally Rogers, ScD, 617/353-3549

Public Contact: E. Sally Rogers, ScD, 617/353-3549; Fax: 617/353-7700

Project Number: H133B990023

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 99 $749,990; FY 00 $749,990; FY 01 $350,000; FY 02 $749,990

Other funding: FY 00 $300,000 (Center for Mental Health Services); FY 01 $300,000 (CMHS)

Abstract: This Center studies the recovery and rehabilitation of people with long-term mental

illness and the individual and environmental factors that promote recovery. It is linked by its programmatic focus on three specific core areas, Recovery Dimensions, Rehabilitation Interventions,

and Alternative Interventions; is strengthened by the use of the appropriate research strategies; and

is assisted by a vigorous program of training, technical assistance, and dissemination activities

designed to maximize the impact of the RRTC at all levels in the field of psychiatric rehabilitation.

The research projects are designed to have an impact on the field, at the personnel, program, and

system levels. Research projects use a participatory research process with significant input from

consumers and other stakeholders, and culminate in dissemination, training, or technical assistance

activities to maximize the impact of the research program. The Training, Dissemination, and Technical Assistance (TDTA) projects are designed to provide exposure, experience, and expertise to

knowledge transfer. The TDTA component produces new technologies in recovery and rehabilitation, and increases the likelihood that researchers, service providers, and others use the cumulative

knowledge developed by this Center.
Independent Living and Community Integration 4-9

Rehabilitation Research and Training Centers (RRTCs)

Minnesota

Rehabilitation Research and Training Center for Community

Integration of Persons with Mental Retardation

University of Minnesota

RRTC/Institute on Community Integration

204 Pattee Hall

150 Pillsbury Drive Southeast

Minneapolis, MN 55455

lakin001@umn.edu

http://rtc.umn.edu

Principal Investigator: Charlie Lakin, PhD, 612/624-5005

Public Contact: Mary Hayden, PhD, 612/625-6046; Fax: 612/625-6619

Project Number: H133B980047

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 98 $700,000; FY 99 $700,000; FY 00 $700,000; FY 01 $700,000; FY 02

$700,000

Other funding: $560,000 (Administration on Developmental Disabilities); $150,000 (Health Care

Financing Administration); $50,000 (additional NIDRR funds); $60,000 (University of Minnesota);

$60,000 (other)

Abstract: The Center conducts research, training, technical assistance, and dissemination to enhance

inclusion and self-determination of citizens with mental retardation and related developmental

disabilities (MR/DD). The research program has six outcome areas: support to families, state system

reform, Medicaid services, policies and practices for full participation, consumer controlled services,

and direct support personnel. The approach to each priority area includes: (1) research syntheses of

the state of knowledge and practice; (2) secondary analyses of high quality, topically relevant national and state data sets; (3) case studies of best practices; (4) evaluation of demonstration efforts to

improve policy and practice; (5) survey and interview studies of critical issues; and (6) group process studies with key constituencies. An integrated intramural training program addresses the development of skilled disability researchers and rehabilitation professionals, including graduate students,

postdoctoral associates, and research interns. Outreach training programs provide training and

technical assistance to agencies and individuals providing support to people with MR/DD, including

members of their families. Outreach programs include conferences and workshops for a wide variety

of national, regional, and state audiences, a state of the art conference, and intensive technical

assistance with community organizations, including advocacy and self-advocacy organizations. The

Center disseminates practical information to targeted audiences (i.e., IMPACT, Policy Research

Brief, Frontline Initiative) and maintains high standards for scholarly productivity (i.e., books,

journal articles). The Center provides print and web site access to a variety of other information

including descriptions of best practices, national statistics on services and expenditures, resource

guides, and distance learning training.
4-10 Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Independent Living

Management (RRTC- ILM)

The Western New York Independent Living Project, Inc.

3108 Main Street

Buffalo, NY 14214-1384

dusiak@wnyilp.org

http://www.rrtcilm.org

Principal Investigator: Douglas J. Usiak

Public Contact: John Moffat, 716/836-0822; Fax: 716/835-3967

Project Number: H133B000002

Start Date: November 1, 2000

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $600,000; FY 01 $600,000; FY 02 $600,000

Abstract: To help Centers for Independent Living (CIL) become integrated more fully with their

communities, this project identifies and applies best practices, finding examples from both inside

and outside the CIL network. The work is conducted embracing, supporting, and emulating the

principles of the independent living philosophy, which encompass consumer control, self-help,

advocacy, peer relationships, peer role models, and empowerment. The seven projects of the RRTCILM are: (1) developing a database of CIL profiles, aggregating the information required to develop

and implement a set of related research, training, and dissemination projects whose best practices

help to build a secure economic foundation for CILs; (2) designing and testing options for generating funding from alternative sources, through collaborations with others that include building business development strategies and analyzing the policy-related and programmatic consequences of

various funding options (such as those independent of public financing); (3) identifying best practices and developing test programs that allow CILs to expand their services to youth with disabilities

and their families, including those from diverse cultural backgrounds, and to interface with existing

educational and transitional programs to prepare children and youth for independent living; (4)

modifying and testing management models of other successful community-based organizations so

those strategies benefit CILs; (5) investigating CIL and VR agency policies related to collaborations,

and designing strategies for innovative partnerships that promote employment outcomes for individuals with disabilities; (6) coordinating activities with the Rehabilitation Services Administration

(RSA) and providing them instruments, curricula, methodologies, resource guides, and research

findings; and (7) providing training and information for CIL policy-makers, administrators, and

advocates on the RRTC’s research findings and identified strategies.
Independent Living and Community Integration 4-11

Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on the Community

Integration of Individuals with Traumatic Brain Injury

Mount Sinai School of Medicine

Research and Training Center

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

http://www.mssm.edu/tbinet

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372 (V); 212/241-8978 (TTY); Fax: 212/348-5901

Project Number: H133B980013

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $800,000; FY 99 $800,000; FY 00 $800,000; FY 01 $800,000; FY 02

$800,000

Abstract: The RTC is a product of participatory action research, emphasizing the empowerment of

individuals with TBI both in setting and carrying out its research agenda, and in implementing a

program aimed at strengthening the voices of individuals with TBI. The program includes four

evaluation projects and three basic research projects: (1) evaluating a measure of community integration that assesses both the individual :’s level of participation and his or her experience of daily

activity; (2) evaluating an innovative approach to person-centered, community-based VR; (3) evaluating a peer mentoring program; (4) screening for TBI in individuals identified with substance abuse

disorders; (5) researching longitudinal studies of the emergence and resolution of behavioral/emotional challenges post-TBI; (6) researching factors associated with healthy aging after injury; and (7)

validating a brain injury screening approach used in school children. The RRTC is also active in

providing technical assistance and in training and dissemination activities.
4-12 Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center to Improve Services for

Children with Serious Emotional and Behavioral Disabilities and Their

Families

Portland State University

Regional Research Institute

School of Social Work

P.O. Box 751

Portland, OR 97207-0751

rtcinfo@rri.pdx.edu

http://www.rtc.pdx.edu

Principal Investigator: Barbara Friesen, PhD

Public Contact: Rachel Elizabeth, Public Information and Outreach Coordinator, 503/725-8118;

Fax: 503/725-4180

Project Number: H133B990025

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 99 $725,000; FY 00 $725,000; FY 01 $300,000; FY 02 $725,000

Other funding: FY 99 $150,000 (Center for Mental Health Services (CMHS)); FY 00 $155,000

(CMHS); FY 01 $570,000 (CMHS)

Abstract: This project conducts an integrated set of research, training, and technical activities to:

(1) develop and evaluate service delivery models for children with an emotional disturbance and

their families, including family-centered and culturally sensitive services; (2) define and evaluate the

formal and informal components of family support and identify successful family support interventions; (3) identify and evaluate early intervention strategies; and (4) identify, develop, and evaluate

communication skills to enable families and service providers to communicate effectively with each

other. Research issues include caregivers and employment, inclusive care, early intervention, education, service delivery, training, and mentoring. This project participates in the NIDRR Scholars

program, providing motivated undergraduates with internship experience in disability research.
Independent Living and Community Integration 4-13

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

District of Columbia

Leadership Development: A New Generation of Effective Leadership

Howard University

2900 Van Ness Street Northwest

Holy Cross Hall, Suite 100

Washington, DC 20008

swalker@howard.edu

Principal Investigator: Sylvia Walker, EdD

Public Contact: 202/806-8086; Fax: 202/806-8148

Project Number: H133A990020

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 99 $175,000; FY 00 $175,000; FY 01 $175,000; FY 02 $175,000

Abstract: This project improves services provided under the Rehabilitation Act as amended, especially services provided to individuals from minority populations. The goal of the project is to

increase the leadership competencies of individuals with disabilities from underserved and

underrepresented communities, thereby maximizing the full inclusion and integration of people with

disabilities from underserved and underrepresented groups into society, employment, independent

living, family support, and economic and social self-sufficiency. All activities are focused on promoting and ensuring full participation of members of groups who have traditionally been

underserved by the VR system. Community-based rehabilitation, disability, and educational organizations and entities work as collaborators to the project in nominating people from underserved and

underrepresented groups to participate in the training and to provide assistance to the participants in

the implementation of a follow-up plan of action. Individuals participate in a leadership development training program that provides a broad range of technical assistance, consultation, and support

services to them during implementation of their individual action plans.
4-14 Independent Living and Community Integration

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

California

Parents with Disabilities and Their Adolescent Children

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

rolkin@lookingglass.org

http://www.lookingglass.org

Principal Investigator: Rhoda Olkin, PhD

Public Contact: 800/644-2666; Fax: 925/944-1859

Project Number: H133G990130

Start Date: October 1, 1999

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $150,000; FY 00 $150,000; FY 01 $150,000; FY 02 (No-cost extension

through 6/30/2003)

Abstract: This project: (1) defines the national population of parents with disabilities with adolescent children and their demographic characteristics; (2) compares family responsibilities, i.e., household tasks and personal care tasks of adolescents in families in which a parent does or does not have

a disability; (3) furthers the understanding of key disability-related concerns for the parents and their

adolescent children; (4) furthers the understanding of family responsibilities within the context of

families in which a parent has a disability; (5) furthers the understanding of the influence of a

parental disability on family togetherness and rituals; (6) develops a task analysis model that can be

used to evaluate the degree to which adolescents assist their parents with personal care tasks; (7)

generates hypotheses for further research on parents with disabilities and their children; and (8)

develops and documents methods of reaching underrepresented groups of parents with disabilities.
Independent Living and Community Integration 4-15

Field-Initiated Projects (FIPs)

California

Occupational Therapy Evaluation and Training Module to Guide

Practice with Parents with Physical Disabilities

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

TLG@lookingglass.org

http://www.lookingglass.org

Principal Investigator: Megan Kirshbaum, PhD, 510/848-1112

Public Contact: 800/644-2666 (V); 800/804-1616 (TTY); Fax: 510/848-4445

Project Number: H133G010054

Start Date: November 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: This project develops an evaluation tool and an evaluation training module that helps

occupational therapy students and clinicians in their work with parents with physical disabilities, a

currently underserved population. The training module, which consists of a clinical evaluation tool,

a manual, and a videotape, guides clinical reasoning and the ability to provide appropriate recommendations and options that take into consideration the baby care roles and adapted baby care

equipment needs of parents with physical disabilities who care for (or want to care for) their children. The training module provides a guide to evaluation of baby care needs and intervention in a

variety of settings. Parents who have physical disabilities who also have children birth to age 3

inform production, piloting, and field-testing. Further, occupational therapy expertise is needed

nationally regarding AT related to parenting. This is especially true as regards evaluation of parents

with disabilities whose capability is being questioned, for example in custody, child protection, or

adoption situations. This module paves the way for more inclusion of occupational therapist expertise in these evaluation circumstances.
4-16 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

California

The Relationship Between Early Experiences and Development in

Young Children with Severe Visual Impairments: A Cross-Cultural

Perspective

California State University

Division of Special Education

5151 State University Drive

Los Angeles, CA 90032

jdotekw@calstatela.edu

Principal Investigator: Jamie Dote-Kwan

Public Contact: 323/343-4320; Fax: 323/343-4348

Project Number: H133G80119

Start Date: August 1, 1998

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 98 $116,910; FY 99 $117,539; FY 00 $120,969; FY 01 (No-cost extension

through 7/31/02)

Abstract: This longitudinal project examines the relationship between early experiences and the

development of infants and toddlers who are blind. Subjects consist of 60 caregiver-child dyads

divided equally into four different ethnic groups (i.e., African-American, Hispanic/Latino, AsianAmerican, and Euro-American). The children, approximately 12 months old at the onset of the

study, are examined for approximately 16 months, with data collection occurring at four-month

intervals. Major objectives include: (1) to describe the home environment and early experiences of

young children with severe visual impairments; (2) to examine the differences in home environment

and early experiences between African-American, Hispanic/Latino, Asian-American, and

EuroAmerican families; (3) to examine the relationship between caregiver-child interaction and

home environment to the development of young children with severe visual impairments; (4) to

identify within-group variables that positively influence the developmental outcomes of young

children with severe visual impairments; and (5) to identify culturally accepted practices and strategies that facilitate the developmental outcomes of young children with severe visual impairments.
Independent Living and Community Integration 4-17

Field-Initiated Projects (FIPs)

California

Total Community Immersion Model for Postsecondary-Age Students

with Significant Disabilities: An Outcome-Based Approach to

Transition

San Francisco State University

Department of Special Education

1600 Holloway Avenue

San Francisco, CA 94132

ncerto@sfsu.edu

Principal Investigator: Nicholas Certo, PhD

Public Contact: 415/338-2503; Fax: 415/338-0566

Project Number: H133G020184

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 02 $150,000

Abstract: This project develops, implements, and evaluates a Total Community Immersion Model

for transitioning students who are 19 and 20 years old. The Oakland Unified School District, in

collaboration with San Francisco State University, has spent the last three years establishing the

Transition Service Integration Model, which has produced a seamless transition to adulthood by

integrating services with adult service providers functioning as receiving agencies and the rehabilitation and developmental disability systems at the point of transition. However, that model focuses

exclusively on the needs of pending graduates, that is, 21-year-old students during their last year of

school, and could benefit from receiving students with well- developed preferences for community

living and employment. A new model, developed through this research, eliminates the use of a fixed

school site and develops initial work and non-work activities that facilitate inclusion into each

individual’s neighborhood, as well as other communities in Oakland and the metropolitan Bay Area.
4-18 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Colorado

Evaluation of Voucher Alternatives for Early Intervention

Developmental Disability Services

University of Colorado Health Sciences Center

Department of Psychiatry

4200 East Ninth Avenue

Campus Box C268-63

Denver, CO 80262

steven.rosenberg@uchsc.edu

http://www.JFKPartners.org/evalvoucheralt.asp

Principal Investigator: Steven Rosenberg, PhD

Public Contact: 303/315-0178; Fax: 303/315-5641

Project Number: H133G80121

Start Date: July 1, 1998

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 98 $119,687; FY 99 $124,411; FY 00 $124,940; FY 01 (No-cost extension

through 6/30/02)

Abstract: This study compares the effect of Block (traditional) and Flexible (fee for service) funding of Part C early intervention services on parent satisfaction, costs, and service utilization. Flexible

funding allows families to obtain services from multiple providers and programs. Block funded

services are provided through a single program that provides all Part C services for the child at a

fixed monthly rate. Preliminary findings indicate that children in Flexible funding receive fewer

educational services and more therapy than children served through Block funding.
Independent Living and Community Integration 4-19

Field-Initiated Projects (FIPs)

Florida

Home-Based Video-Counseling for Rural At-Risk Adolescents with

Epilepsy and Their Parents: An Accessibility and Outcome Analysis

University of Florida

College of Heath Professions

Department of Clinical and Health Psychology

P.O. Box 100165

Gainsville, FL 32610-0165

rgluecka@hp.ufl.edu; pdages@hp.ufl.edu

Principal Investigator: Robert L. Glueckauf, PhD, 352/265-0680, ext. 4-6880

Public Contact: Patricia Dages, Project Coordinator, 800/282-2962; 352/265-0680, ext. 4-4129;

Fax: 352/265-0468

Project Number: H133G990500

Start Date: December 1, 1999

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 99 $149,900; FY 00 $149,900; FY 01 $149,900; FY 02 (No-cost extension

through 12/31/2002)

Abstract: This project is evaluating the impact of issue-specific, video-system counseling on the

psychosocial and educational functioning of at-risk teens with epilepsy and their parents who reside

in rural areas. Objectives include: (1) assessing the difference between home-based video counseling

and office-based counseling on the level of improvement, severity, and frequency of specific problems identified by at-risk teens and their parents; (2) assessing the difference between home-based

video counseling and office-based family counseling on the therapeutic relationship between family

member and counselor, and on overall consumer satisfaction; (3) examining the effects of homebased video counseling and office-based counseling on overall family functioning; and (4) testing

for differences in adherence to intervention and in attrition rates between families in the two counseling conditions.
4-20 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Illinois

Determining the Effectiveness of a Capacity-Building Program for

Individuals with Chronic Fatigue Syndrome

University of Illinois/Chicago

Department of Occupational Therapy (MC811)

1919 West Taylor Street

Chicago, IL 60612

rtaylor@uic.edu

http://www.depaul.edu/~ljason/cfs

Principal Investigator: Renee Taylor, PhD

Public Contact: 312/996-3412; Fax: 312/413-0256

Project Number: H133G010136

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 01 $149,908; FY 02 $149,804

Abstract: This project evaluates the efficacy, replicability, and sustainability of peer-based intervention strategies applied to individuals with chronic fatigue syndrome (CFS) as implemented within a

Center for Independent Living (CIL). The project applies theoretical frameworks of empowerment

theory, participatory action research, control theory, and the new paradigm of disability. The predicted outcome is that such community-based intervention improves overall quality of life, functional capacity, illness severity, coping, and service utilization among individuals with CFS. In

addition, the study predicts that the intervention serves to increase knowledge and awareness of CFS

among CIL staff. The resulting findings, curriculum, and resource manual are disseminated to other

individuals with CFS, researchers, treatment providers, policy-makers, self-help groups, and to CILs

nationwide. These findings have important implications in the design of future studies for people

with CFS, and for individuals with other emergent disabilities, such as fibromyalgia, multiple

chemical sensitivity, and Gulf War Syndrome.
Independent Living and Community Integration 4-21

Field-Initiated Projects (FIPs)

Illinois

University of Illinois at Chicago Mental Health Services Research

Program Medication Adherence Program Study (UIC-MAPS)

University of Illinois/Chicago

104 South Michigan Avenue, Suite 900

Chicago, IL 60603-5902

razzano@psych.uic.edu

http://www.psych.uic.edu/mhsrp

Principal Investigator: Lisa A. Razzano, PhD

Public Contact: 312/422-8180, ext. 20; Fax: 312/422-0740

Project Number: H133G010093

Start Date: September 1, 2001

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: This project examines the effects of a multifaceted curriculum designed to improve

adherence to medication and treatment regimens, explore attitudes regarding physical health and

treatment planning, and improve the ability of participants to return to work. The UIC-MAPS

intervention comprises several components, including: (1) developing an educational workshop

consisting of three one-hour modules regarding health information, use of anti-retroviral medications, treatment planning, maintaining health, detecting early symptoms of illness progression, and

other topics; (2) developing individualized medication plans; (3) meeting with clients and their

identified sources of social support to address medication and services issues; and (4) hosting

monthly peer-led support groups on medication adherence, attitudes toward health and medication

regimens, and issues related to health, well-being, and quality of life. The project includes a comprehensive evaluation designed to make significant contributions to the state-of-the-science literature

regarding employment and adherence among people living with HIV/AIDS. In addition, information

from peer support group leaders regarding their role(s) in working with other individuals living with

HIV/AIDS is examined. The Mental Health Services Research Program (MHSRP) at the University

of Illinois at Chicago is collaborating with Chicago House, a community-based HIV/AIDS services

organization on this project.
4-22 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Illinois

Moving Out of the Nursing Home and to the Community: Examining

and Effecting Social Change

University of Illinois/Chicago

Department of Occupational Therapy /

Department of Disability and Human Development

1919 West Taylor, M/C 811

Chicago, IL 60612-7250

hammel@uic.edu

http://www.uic.edu/ahs/OT/research.htm

Principal Investigator: Joy Hammel

Public Contact: 312/996-3513; Fax: 312/413-0256

Project Number: H133G010033

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $149,989; FY 02 $149,993

Abstract: This project develops, evaluates, and disseminates a social action and networking program with people with disabilities who are transitioning from nursing homes to communities of their

choice. The majority of community reintegration program research has focused on individual functional skill development as delivered by professionals. This new social action program, based on

disability studies research and disability narratives, targets four major unmet needs for: (1) sustained

networking with peers, mentors, and activists who have disabilities who can share experiences and

strategies; (2) joining meaningful social reference groups, especially those in which disability

identity, pride, community membership, and collective activism are valued and modeled; (3) using

information technologies, such as computers and the Internet, to gain knowledge, socialize, and

network with identified communities of choice; and (4) gaining access to consultative services and

resources to access these technologies and the community environment over time. The project uses a

participatory action research collaboration approach to create and research the impact of this social

action program on long-term community living, participation, quality of life, social networking, and

individual and collective identity development processes and outcomes. The project involves a

collaborative partnership to effect social change among two Centers for Independent Living, two

departments within the Joint Doctoral Program in Disability Studies at the University of Illinois/

Chicago (UIC), the Center on Disability Research at UIC, and state agencies and disability organizations involved in community reintegration and resource allocation to support community living.
Independent Living and Community Integration 4-23

Field-Initiated Projects (FIPs)

Illinois

Integration at Home: Strengthening Family Relationships of Adults

with Disabilities

University of Illinois at Chicago

1640 West Roosevelt Road, M/C 626

Chicago, IL 60608-6904

cg16@uic.edu

Principal Investigator: Carol J. Gill, PhD

Public Contact: 312/355-0550 (V); 312/996-4664 (TTY); Fax: 312/996-7743

Project Number: H133G020146

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $149,957

Abstract: This study investigates the family relationship issues of adults with physical or mobility

disabilities and adults with chronic fatigue syndrome. Phase I involves focus group interviews with

adults with disabilities for an open exploration of family relationship issues. Phase II involves indepth case studies of families experiencing disability who exemplify positive family integration.

Phase III involves a randomized control group study to test the impact of a family “intervention”

based on the social model of disability.
4-24 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Illinois

Enabling Self-Determination for People Living with AIDS

University of Illinois at Chicago

Department of Occupational Therapy

M/C 811, 1919 West Taylor Street

Chicago, IL 60612

kielhfnr@uic.edu

Principal Investigator: Gary Kielhofner, PhD; Brent Braveman, PhD, 312/996-4973 (Kielhofner);

312/355-2656 (Braveman)

Public Contact: Fax: 312/413-0256

Project Number: H133G020217

Start Date: January 1, 2003

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $149,032

Abstract: This project implements and studies a model program of peer- facilitated, empowermentoriented services for people with AIDS within five supportive living facilities. The facility-based

program provides individualized and group services that are tailored to each client’s needs and

provides clients with necessary environmental supports. The program also empowers clients to

access additional resources and services that support their self-determination. This model program,

Enabling Self-Determination, is initially offered to clients in three supportive living facilities.

Researchers study: (1) the independent living, employment, and community participation outcomes

of the model program, and (2) the three facilities’ efforts to sustain the program. These two conditions are compared to a control group comprised of individuals from two other facilities who receive

basic educational services. Participatory research methods are used to identify potential obstacles

and solutions to program implementation and efficacy, and to evaluate how the services impact upon

and are viewed by the clients. Researchers work closely with the two control group facilities to build

their capacity to implement the model program. In this way, the five transitional living facilities in

Chicago that serve persons with AIDS are empowered to sustain the Enabling Self-Determination

program. Finally, the project creates extensive resources for program replication and vigorously

disseminates the model program so that community-based supportive living facilities can replicate

the program nationwide.
Independent Living and Community Integration 4-25

Field-Initiated Projects (FIPs)

Kansas

Independent Living for People with Psychiatric Disabilities: Using

Contextual Cues to Remove Environmental Barriers

University of Kansas Medical Center

Occupational Therapy Education

3033 Robinson Building

3901 Rainbow Boulevard

Kansas City, KS 66160-7602

tbrown@kumc.edu

http://www2.kumc.edu/pdrp

Principal Investigator: Catana Brown, PhD

Public Contact: 913/588-7195; Fax: 913/588-4568

Project Number: H133G000152

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 00 $148,765; FY 01 $136,107; FY 02 $148,672

Abstract: This project examines an intervention that reduces environmental barriers by teaching

contextual cues. The grocery store, an exemplar of a complex community-based environment, is the

focus, and grocery shopping is the designated skill. The hypotheses tests the effectiveness of the

intervention in improving knowledge, performance, and application of grocery shopping skills, and

the relationship of cognition to skill acquisition. Individuals with psychiatric disabilities from five

community-based sites are randomly assigned to either the grocery shopping intervention or a waitlist control group. Outcome measures address all levels of skill acquisition: knowledge, performance

(including generalizability and maintenance), and application of grocery shopping skills. In addition,

measures of basic cognitive processes and executive functioning determine whether cognition

predicts skill acquisition. Consumer collaborators are included in all aspects of the program. The

findings provide direction for enhancing this and other skills training interventions.
4-26 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Louisiana

Louisiana’s Self-Determination Research Project

Louisiana State University Health Sciences Center

Human Development Center

1100 Florida Avenue, Building 119

New Orleans, LA 70119

jeverson@lsuhsc.edu

http://www.hdc.lsumc.edu

Principal Investigator: Jane M. Everson, PhD

Public Contact: 504/942-8188; Fax: 504/942-5908

Project Number: H133G990169

Start Date: April 1, 1999

Length: 36 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 99 $149,999; FY 00 $150,000; FY 01 $150,000; FY 02 (No-cost extension

through 7/31/2002)

Abstract: This project investigates short- and long-term effects that self-determination instruction,

participation in a Youth Leadership Forum (YLF), or both have on the self-determination abilities,

IEP involvement, and adult outcomes of adolescents with disabilities. The curricula and the YLF are

based on these premises: (1) self-determination is a critical factor for successful transition into

adulthood, (2) individuals with disabilities do not easily achieve desired adult outcomes because

they generally do not possess self-determination skills, and (3) self-determination instruction improves these students’ adult outcomes. The target population for this study is adolescents with

disabilities attending high schools throughout Louisiana, beginning in their junior year, until one

year after exiting high school.
Independent Living and Community Integration 4-27

Field-Initiated Projects (FIPs)

Louisiana

Louisiana Community Housing Advocacy Network (LA-CHAN)

Louisiana State University

Health Science Center

LSU HSC-HCD #119

1100 Florida Avenue

New Orleans, LA 70119

Pwilso2@lsuhsc.edu

Principal Investigator: Philip Wilson, PhD, 504/942-8240

Public Contact: Nancy Robertson, 504/942-8294

Project Number: H133G020211

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $150,000

Abstract: This project recruits, hires, trains, and supports two individuals with significant disabilities to serve as housing advocates. These individuals are the primary point of contact between the

project and the communities they serve. The goals of the project include: (1) establishing an array of

community housing options for individuals with disabilities and low incomes, (2) establishing

programs and supports/services necessary to ensure that individuals with disabilities and low incomes have access to community housing options within participating communities, and (3) a

network of key stakeholders concerned with community housing issues.
4-28 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Michigan

Identifying Social Integration Needs During Transition to Adulthood

Following Traumatic Brain Injury

University of Michigan

Department of Physical Medicine and Rehabilitation

Box 0718

1500 East Medical Center Drive

Ann Arbor, MI 48109-0718

sethaw@umich.edu

Principal Investigator: Seth Warschausky, PhD

Public Contact: Joan Zaccagnini, 734/936-7052; Fax: 734/936-7048

Project Number: H133G000038

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $148,363; FY 01 $136,590; FY 02 $143,034

Abstract: This study identifies specific social rehabilitation and integration needs of persons with

TBI. Social functioning is a core domain of quality-of-life, a key predictor of well-being, and is

critical to the development of independence. Earlier work has demonstrated that persons with TBI

are at risk for social isolation and impaired social problem-solving (SPS) skills including the ability

to be assertive in achieving desired social outcomes in school, work, and other settings. SPS skills

have been shown to be powerful predictors of social success and integration in noninjured individuals. The specific aims of this study are to: (1) examine SPS skills as key predictors of social integration and quality of life in a sample of young adults with TBI; (2) examine the mediating role of SPS

in the relationships between age of onset of TBI and outcome variables; (3) examine predictors of

SPS following TBI; and (4) examine SPS following childhood TBI as predictors of social integration and subjective well-being in adulthood.
Independent Living and Community Integration 4-29

Field-Initiated Projects (FIPs)

Michigan

Stress and Coping over the Life Course: A Perspective on Women with

Spinal Cord Injury

University of Michigan

Physical Medicine and Rehabilitation

Rehabilitation Psychology

1H241 - University Hospital

1500 East Medical Center Drive

Ann Arbor, MI 48109-0050

dgtate@umich.edu

http://www.med.umich.edu/pmr/arrtp/

Principal Investigator: Denise G. Tate, PhD

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133G020060

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $149,995

Abstract: This investigation describes the challenges to independent living faced by women with

SCI and the strategies they use to manage the stresses of everyday life. The ratio of men to women

who sustain SCI is approximately four to one, with current national prevalence of women estimated

to be 36,900. Much of the research on SCI has focused on men and may not reflect the experiences

of women with SCI. Even more than their male counterparts, women with SCI endure multiple

minority status, poverty, lack of education, job discrimination, and restricted choices, and are often

burdened by extra care-taking responsibilities, all of which may elevate their risk for stress- related

disorders. This study: (1) documents, from a contextual life perspective, the ways women with SCI

perceive and respond to stressful life events; (2) explores, in depth, effective and ineffective ways of

coping; and (3) assesses the impact these strategies have on quality of life.
4-30 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Michigan

Quality of Life for Persons with a Spinal Cord Injury: A Qualitative

Longitudinal Study

Wayne State University

Rehabilitation Institute of Michigan

261 Mack Boulevard, Room 520

Detroit, MI 48201

chduggan@excite.com

Principal Investigator: Colette Duggan, PhD

Public Contact: 313/745-1070; 313/745-9735; Fax: 313/966-7502

Project Number: H133G990219

Start Date: July 1, 1999

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $148,565; FY 00 $148,565; FY 01 $148,565; FY 02 (No-cost extension

through 6/30/03)

Abstract: This qualitative, longitudinal investigation increases understanding of the experience of

quality of life (QOL) of people with SCI. The study focuses on changes in self-rated QOL from

before injury (retrospectively) through 30 months post- SCI. Project objectives: (1) to collect longitudinal data on QOL as experienced by various groups of people with SCI, based on multiple unstructured interviews starting soon after injury; (2) to analyze this information with specific attention

to subjective QOL differences between groups, changes, and consistencies over time, and the interplay of internal factors such as personality and the will to live, with external factors such as neurological recovery, equipment, and resources; and (3) to disseminate information on QOL after SCI to

consumers, professionals, and other concerned audiences. Analyses of the data address a number of

specific hypotheses on the process of change in subjective QOL.
Independent Living and Community Integration 4-31

Field-Initiated Projects (FIPs)

Michigan

Community Participation After Spinal Cord Injury: Idioms of Beliefs

and Behaviors

Wayne State University

Institute of Gerontology

87 East Ferry Street

Knapp Building, Room 231

Detroit, MI 48202

c.lysack@wayne.edu

Principal Investigator: Catherine Lysack, PhD

Public Contact: 313/577-2297; Fax: 313/875-0127

Project Number: H133G020151

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $149,959

Abstract: This study identifies and describes the self-defined forms of community and the modes of

community participation found meaningful to persons living with SCI. The five specific aims are to:

(1) discover and describe the self-defined forms of community that people with SCI envision and

pursue in daily life; (2) identify and describe the cultural and individual idioms of beliefs and behaviors by which people with SCI create a sense of identification and participate in personally valued

communities; (3) identify the barriers to participation in desired communities, and strategies and

techniques (if any) that persons with SCI use to overcome these barriers; (4) compare and contrast

persons in two groups (new onset SCI and more longstanding duration) in terms of the forms of

community, idioms of identification, and strategies used to overcome barriers and achieve meaningful community participation; and (5) evaluate preliminary qualitative hypotheses about the nature

and modes of community participation actually envisioned by persons with SCI themselves.
4-32 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Minnesota

National Study on the Impact of SSI Redetermination of 18-Year-Old

Youth with Disabilities on Employment, Independent Living, and

Community Participation Outcomes

University of Minnesota

Institute on Community Integration

102 Pattee Hall

150 Pillsbury Drive SE

Minneapolis, MN 55455-0223

johns006@umn.edu

Principal Investigator: David R. Johnson, PhD, 612/624-1062

Public Contact: Jane Schleisman, 612/625-0350; Fax: 612/624-9344

Project Number: H133G000201

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $149,988; FY 01 $149,946; FY 02 $149,955

Abstract: This project performs three specific types of studies and analyses on the impact of SSI

redetermination: (1) individual and family case studies: in-depth case studies in three or four states,

to understand better the impact of SSI redetermination policies and practices on individuals and

families; ( 2) research integration/synthesis: previous post-school outcome, policy, and service

delivery research studies and reports focusing on SSA policies and practices, reviewed, synthesized,

and reported in a comprehensive monograph; and ( 3 ) an expert panel/best practices review: “promising” or “best” practices related to SSA’s SSI redetermination policies and practices, identified and

reviewed.
Independent Living and Community Integration 4-33

Field-Initiated Projects (FIPs)

Missouri

PeerLink: Empowering Persons with Disabilities to Manage Their

Own Information

University of Missouri

Department of Health Psychology, DC046.46

1 Hospital Drive

Columbia, MO 65211

schoppl@health.missouri.edu

http://www.telerehab.net

Principal Investigator: Laura Schopp, PhD

Public Contact: 573/882-8847; Fax: 573/884-4540

Project Number: H133G020065

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: William W. Schutz, PhD

NIDRR Funding: FY 02 $145,379

Abstract: This project develops an information management system that allows users to share

personal and local community resource information instantaneously and selectively, according to

their own specifications. The PeerLink team provides expertise in disability issues, informatics, and

adaptive computing. PeerLink creates information innovation in three major goal areas: (1) peer-topeer information transfer model: developing, seeding, and implementing a highly disseminated,

agile information system to promote effective service integration by enabling efficient consumerdirected information transfer; (2) knowledge management: converting implicit local resource information held by knowledgeable community members with disabilities in order to make vetted information more broadly available to other community members when and where they need it; and (3)

graphic representation: capitalizing on an existing information dissemination user interface to allow

access to geographically based visualization of data for local disability resources.
4-34 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

New Hampshire

Survey of Home Ownership Nationwide

University of New Hampshire

Institute on Disability

7 Leavitt Lane, Suite 101

Durham, NH 03824

david.hagner@unh.edu

http://www.alliance.unh.edu

Principal Investigator: David Hagner, PhD

Public Contact: 603/862-4320; Fax: 603/862-0556

Project Number: H133G000034

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 00 $149,999; FY 01 $149,999; FY 02 $150,000

Abstract: This project systematically investigates the quality-of-life outcomes of home ownership

for people with severe disabilities, and the personal, service system, financial system, and support

network variables associated with achieving and maintaining successful home ownership. Five

interrelated studies are conducted: (1) a home ownership outcome study, using in-person structured

interviews across six states, conducted by individuals with disabilities, in collaboration with the

Temple University Institute on Disabilities, to examine the effect of home ownership on quality-oflife and quality-of-service provision; (2) a study of facilitating and inhibiting factors in home ownership, based on telephone interviews with disability service system personnel, financial personnel,

and informal support persons assisting the successful and unsuccessful home seekers identified in

the outcome study above, in collaboration with the UNH Center for Survey Research; (3) an investigation of the predictors of mortgage company underwriting decisions to test the effect of differences

in disability, assistance, and income sources on mortgage lending; (4) an intensive case study of

selected home owners to examine the personal meaning of home ownership and the process of

overcoming barriers; and (5) a follow- along study of the variables associated with long-term success by successful home owners.
Independent Living and Community Integration 4-35

Field-Initiated Projects (FIPs)

New Jersey

Improving the Health Care Encounter for Persons Who Have

Developmental Disabilities

Matheny School and Hospital

P.O. Box 339

Peapack, NJ 07977-0339

research@matheny.org

Principal Investigator: Kenneth L. Robey, PhD

Public Contact: 908/234-0618; Fax: 908/234-0963

Project Number: H133G010153

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 01 $125,515; FY 02 (No-cost extension through 9/30/2003)

Abstract: This project develops an integrated set of methodologies and materials to improve the

quality of the health care encounter for persons who have developmental disabilities, by increasing

the readiness of medical students and other health care students to work with this population. During

their training, physicians and other health care professionals typically receive little exposure, either

in lecture or clinical settings, to persons with developmental disabilities. Consequently, many enter

their professions with little understanding of the needs and potentials of persons with developmental

disabilities, and unfortunately, with varying degrees of willingness and comfort when serving those

individuals. The project uses a computer-based module and standardized patient profile to train

health care students regarding developmental disability. The module has a particular focus on communication between the health care professional and the person with a developmental disability.

This work capitalizes on The Matheny School’s extensive experience as a rotation/orientation site

for University of Medicine and Dentistry of New Jersey (UMDNJ) medical students, nursing students, dietary students, and students in the therapies.
4-36 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

New York

Evaluating Independent Living Outcomes for Blind and Visually

Impaired Older People: Development of a Nationally Standardized

Minimum Dataset (NSMD)

American Foundation for the Blind

11 Penn Plaza, Suite 300

New York, NY 10001

corinne@afb.net

http://www.afb.org

Principal Investigator: Corinne Kirchner, PhD; Alberta L. Orr, MSW

Public Contact: 212/502-7640; Fax: 212/502-7773

Project Number: H133G010183

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: This project develops and pilot tests a Nationally Standardized Minimum Dataset

(NSMD), through which research can be conducted on the outcomes of services for older persons

with visual impairments. This population has traditionally been underserved by public programs

including the VR system and the aging network. The NSMD is piloted in several agencies throughout the country and includes: (1) pre-service consumer data, (2) a post-service consumer profile, (3)

a functional outcomes assessment, and (4) a consumer satisfaction and perceived outcome survey.

Public agency administrators and staff are the primary audience. Secondary target audiences are

private agencies for the blind, centers for independent living, and consumers.
Independent Living and Community Integration 4-37

Field-Initiated Projects (FIPs)

Ohio

A Family Intervention Following Traumatic Brain Injury in Children

Children’s Hospital Medical Center

Pediatric Rehabilitation

3333 Burnet Avenue

Cincinnati, OH 45229-3039

wades0@chmcc.org

Principal Investigator: Shari L. Wade, PhD, 513/636-7480

Public Contact: Fax: 513/636-7360

Project Number: H133G990069

Start Date: April 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $149,008; FY 00 $147,765; FY 01 $147,509; FY 02 (No-cost extension

through 3/31/03)

Abstract: This project operates an outpatient intervention program that studies the impact on

caregiver functioning of moderate to severe TBI in children. It seeks to reduce psychological disability in caregivers, thereby enabling the family to support the child’s recovery from TBI in an

optimal way, through development and testing of an intervention adapted from established problemsolving and communications skills training protocols that have been used successfully with families

of children with chronic illnesses and behavior disorders. The study is a randomized, controlled trial

comparing the effects of standard medical and psychosocial care to standard care plus the individualized problem-solving and communication intervention on the following outcomes: (1) injuryrelated stress and burden, and (2) caregiver psychological distress. Participants include the families

of children, aged 6-14, who have experienced a moderate to severe TBI between 6 and 18 months

prior to study participation. Families are randomly assigned to the standard care or problem- solving/communication skill groups. Group differences are examined using a multivariate approach to

analysis of covariance, controlling for injury severity, age, gender, sociodemographic status, and

time since injury. The hypothesis is that better problem- solving and communication skills means

less injury-related stress and better caregiver functioning among the intervention group compared to

the standard care group.
4-38 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Ohio

Neuropsychological Functioning and Psychosocial Adjustment in

Adolescents with Spina Bifida and NLD

Children’s Hospital Medical Center

Division of Psychology

3333 Burnet Avenue

Cincinnati, OH 45229-3039

robert.ammerman@chmcc.org

Principal Investigator: Robert T. Ammerman, PhD

Public Contact: 513/636-8209; Fax: 513/636-7756

Project Number: H133G000134

Start Date: September 1, 2000

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 00 $147,750; FY 01 $149,958; FY 02 $147,623

Abstract: This study examines the relationship between type and severity of neuropsychological

impairment, in particular the nonverbal learning disability (NLD) profile, and psychosocial functioning in adolescents with spina bifida. Adolescents with spina bifida exhibit a variety of

neurocognitive deficits that are thought to undermine psychosocial adjustment. Between 40 and 50

percent have neuropsychological impairments indicative of NLD, which is strongly associated with

poor social adjustment and internalizing behavior problems (e.g., depression). In general, adolescents with spina bifida display problems in behavioral, social, and personality adjustment, although

there is considerable variability in this population. Primary goals of the study are to: (1) identify

differential patterns of psychosocial management at different points in adolescent development; (2)

determine the predictive utility of the NLD profile to subsequent psychosocial functioning and

determine if psychosocial problems increase with age in those with NLD; and (3) test whether

family functioning moderates the association between neuropsychological impairment and psychosocial adjustment. Results from this study elucidate causal relationships between neuropsychological

impairment and psychosocial functioning in adolescents with spina bifida, delineate risk factors that

contribute to early identification and the design of effective interventions, and reveal patterns of

psychosocial functioning across age in adolescents.
Independent Living and Community Integration 4-39

Field-Initiated Projects (FIPs)

Oregon

Getting A Life: Research on Individual and Person-Centered Planning

Processes in Oregon

University of Oregon

Educational and Community Supports

1235 University of Oregon

Eugene, OR 97403-1235

ralbin@oregon.uoregon.edu

http://www.uoecs.org/grants/ECSprojects.htm

Principal Investigator: Richard Albin, PhD

Public Contact: 541/346-2464; Fax: 541/346-5517

Project Number: H133G010167

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $149,999; FY 02 $149,999

Abstract: This project researches the relative merits of forms of Person- Centered Planning (PCP),

including the Individualized Support or Service Plan (ISP) system, Essential Lifestyle Planning

(ELP), and others. Activities include the following three studies: (1) surveying the features of

individual planning systems used in Oregon at the start of the project and in Year 3 after large scale

systems change efforts have occurred; (2) creating a causal-comparative 3-by-2 factorial group

design, where study participants are assigned to groups based on whether they are experiencing a

defined set of significant life challenges and the types of service planning they receive, with groups

balanced or blocked based on demographic variables; and (3) creating a multiple-baseline single

subject design in which the outcomes of three service planning approaches (ISPs, ELPs, and PCP)

are compared related to specific outcomes for six individuals who experience challenging behavior.
4-40 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Oregon

Men’s Personal Assistance Services Abuse Research Project

Oregon Health and Science University

Center for Self-Determination

3608 Southeast Powell Boulevard

Portland, OR 97202

powersl@ohsu.edu; mcneffe@ohsu.edu

http://selfdetermination.ohsu.org

Principal Investigator: Laurie Powers, PhD, 503/232-9154, ext. 104

Public Contact: Elizabeth McNeff, MPA, MHA, 503/232-9154, ext. 150; Fax: 503/232- 6423

Project Number: H133G010040

Start Date: October 1, 2001

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: This project focuses on prevention and management of personal assistance service (PAS)

abuse carried out against men with disabilities who are living independently in the community, who

are abused by their formal or informal PAS providers. It increases identification, assessment, and

response by: (1) developing a knowledge base regarding men’s definitions, perceptions, and experiences of PAS abuse; (2) designing a culturally sensitive screening and assessment approach that can

be used by men, Centers for Independent Living (CILs), and health and disability services providers

to identify PAS abuse; and (3) identifying culturally appropriate response strategies that can be used

by men, CILs, and health and disability services providers to prevent and manage PAS abuse. The

project is collaboratively conducted by the Center on Self-Determination at the Oregon Institute on

Disability and Development of Oregon Health Sciences University, the World Institute on Disability,

and Berkeley Planning Associates.
Independent Living and Community Integration 4-41

Field-Initiated Projects (FIPs)

Oregon

Community Environmental Assessment Project: A Multi-Method

Approach to Identify Barriers, Assets, and Engage Communities for

Change

Oregon Health and Science University

P.O. Box 574

Portland, OR 97207-0574

drumc@ohsu.edu

http://cdrc.ohsu.edu/oodh

Principal Investigator: Charles Drum, JD, PhD, 503/494-8047

Public Contact: 503/494-3331; Fax: 503/494-6868

Project Number: H133G020125

Start Date: October 1, 2002

Length: 12 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $150,000

Abstract: This project develops a multi-method approach to measure a community’s level of accessibility. The project measures accessibility of communities through a process of community engagement and use of extant data. Effectively measuring community accessibility through the explication

and depiction of extant data at the local level can provide the means for participatory social change

at low cost, using available resources. The project’s major objectives and activities include: (1)

identifying access issues in different communities through a call-back survey of people with disabilities, summarizing results by type and location of community; (2) engaging community members to

identify local needs and resources and measurable indicators of barriers and facilitators; (3) developing community profiles based on measurable indicators (including statistical data and maps with

geographic information systems); (4) evaluating community access at the local community level by

reviewing all data and maps to address future plans, policies, or interventions to improve access with

disability experts, community leaders, service and government agencies, and planners; and (5)

developing and disseminating a handbook that summarizes the multi-method approach. The project

summarizes procedures and findings and disseminates them nationally.
4-42 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Oregon

Healthy Lifestyles Evaluation Project

Oregon Health and Science University

P.O. Box 574

Portland, OR 97201-0574

drumc@ohsu.edu

http://cdrc.ohsu.edu/oodh

Principal Investigator: Charles Drum, JD, PhD, 503/494-8047

Public Contact: 503/494-3331; Fax: 503/494-6868

Project Number: H133G020231

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $150,000

Abstract: This project evaluates the effectiveness of the Healthy Lifestyles for People with Disabilities training curriculum. To achieve this goal, the project: (1) conducts ten Healthy Lifestyles training events for persons with disabilities through local Centers for Independent Living within the

Portland metropolitan area and statewide; (2) assesses the level of wellness and the healthy lifestyles

attitudes, knowledge, and skills of participants over the course of the project (before and after

participating, and over time, to evaluate the effectiveness of the curriculum in establishing and

maintaining long-term lifestyle changes); (3) assesses participants=’ completion of lifestyle change

goals; and (4) compares participants’ wellness and healthy lifestyles attitudes, knowledge, and skills

to that of controls.
Independent Living and Community Integration 4-43

Field-Initiated Projects (FIPs)

Texas

The Transition of Pediatric Burn Survivors into Adulthood

University of Texas Medical Branch

301 University Boulevard

Galveston, TX 77555-0189

wmeyer@utmb.edu

Principal Investigator: Walter J. Meyer, III, MD

Public Contact: 409/747-8355; Fax: 409/747-8352

Project Number: H133G990052

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 99 $150,000; FY 00 $150,000; FY 01 $150,000; FY 02 (No-cost extension

through 5/31/2003)

Abstract: This study examines the long-term adjustment of pediatric burn survivors as they undergo

the transition from adolescence and burn induced dependency to the independence and autonomy of

adulthood. It is hypothesized that individuals burned as children have increased difficulty with the

transition from home to independent living. They expect that for these individuals, psychosocial

difficulties with the transition to adulthood increase with larger burn size. The study completes a

baseline assessment of 150 individuals ages 18 to 26, burn size 30 percent or greater, and at least 2

years postburn, who have been treated at the Shriners Burns Hospital as children. This assessment

includes a physical disability determination and intelligence testing as well as interviews focusing on

psychiatric disorder, psychosocial adjustment, living arrangement, and family relationships. The data

is analyzed against age, with special attention to gender, burn size and viability, age of burn, physical handicaps, intelligence, and initial family environment.
4-44 Independent Living and Community Integration

Field-Initiated Projects (FIPs)

Virginia

Middle School Phonemic Awareness Study

George Mason University

Krasnow Institute for Advanced Study

MS #2A1

Fairfax, VA 22030-4444

bgiven@gmu.edu

http://mason.gmu.edu/~bgiven

Principal Investigator: Barbara Given, PhD

Public Contact: 703/993-4406; Fax: 703/993-4325

Project Number: H133G000142

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $149,920; FY 01 $149,957; FY 02 $149,986

Abstract: This project focuses on the role of phonemic awareness in adolescents with low reading

skills, in two primary areas of concentration. The first focuses on a cost/benefit analysis of a computer-driven phonemic awareness program of elongated tones and speech sound called Fast ForWord

(FF). FF intervention has been provided during school, after school, while adolescents attended a

summer camp alternative to summer school, and in speech and language clinics. The second area of

concentration identifies psycho-physiological differences in low readers as a result of phonemic

awareness, word recognition, and reading comprehension instruction provided by teachers during

school hours. This in-school EEG/ERP/phonemic awareness and reading project includes four

groups of sixth graders reading below forth grade level.
Independent Living and Community Integration 4-45

Field-Initiated Projects (FIPs)

Washington

Multi-Family Group Intervention for Traumatic Brain Injury and

Spinal Cord Injury Patients and Families

Inland Northwest Health Service

711 South Cowley Street

Spokane, WA 99202-1330

beckerb@st-lukes.org

Principal Investigator: Bruce Becker, MD

Public Contact: 509/473-6043; Fax: 509/473-6020

Project Number: H133G020006

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $150,000

Abstract: This project establishes two SCI and two TBI multi-family group (MFG) interventions to

support and teach families and patients about the disability process and management strategies.

MFG is a structured management strategy that has been extensively tested in the management of

chronic schizophrenia and more recently adapted for other chronic disabling conditions. This strategy brings together groups of six to eight families with two MFG group clinician/facilitators in a

psycho-educational problem-solving format, over a period of 18 months. Families are given the

opportunity to discover and share problems and solutions about the process of living with other

families and patients through the implementation of practical guidelines for effective coping. The

intervention has been highly effective in reducing relapse and hospitalizations, and improving

symptom control and quality of life, for persons with schizophrenia. This project compares TBI and

SCI MFG groups for ease of implementation, efficacy (process and outcome), and cost, adapting

measures previously studied in schizophrenia with those used in assessing family stress in SCI and

TBI.
4-46 Independent Living and Community Integration

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

California

A Photo-Real Interactive Virtual Teacher

WaveBand Corporation

375 Van Ness Avenue, Suite 1105

Torrance, CA 90501-7204

btakacs@waveband.com

http://www.waveband.com

Principal Investigator: Barnabas Takacs, PhD

Public Contact: 310/212-7808; Fax: 310/212-7726

Project Number: H133S020009

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: David Malouf

NIDRR Funding: FY 02 $74,929

Abstract: This project develops a photo-real, interactive, virtual teacher to engage and motivate

students to learn. The system creates an intelligent and animated digital person that is capable of

expressing subtle emotions and expressions as part of the meta-communication stream supporting

the verbal content. It is implemented on a PC- based interactive computer animation platform

running over the Internet. The 3D interactive environment goes beyond the state-of-the-art and

delivers a visually rich multi-media environment complete with content editing tools.
Independent Living and Community Integration 4-47

Small Business Innovative Research (SBIR), Phase I

Colorado

Internet-Based System for Transdisciplinary Assessments of Infants

and Toddlers

Play-Based Technologies, LLC

2541 South Cook Street

Denver, CO 80303-3542

tlinder@du.edu

Principal Investigator: Toni W. Linder, EdD

Public Contact: 303/871-2474; Fax: 720/570-0716

Project Number: H133S020118

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Glinda Hill

NIDRR Funding: FY 02 $74,960

Abstract: This project develops the Play Assessment Learning System (PALS) for holistic assessments of infants and toddlers with disabilities. The resulting assessment is transdisciplinary,

strengths-based, and involves parents as integral members of the team. PALS facilitates and guides

teams through conducting transdisciplinary play-based assessments. It provides teams with on-line

parental preassessments, individualized guidelines for conducting play sessions, on-line forms for

teams to record observations, graphical output to assist team and family discussions of strengths and

needs, and personalized web sites to coordinate care for each child. The resulting strengths-based

assessments are qualitative (to plan successful interventions), as well as quantitative (to assist in

qualifying children for services). PALS encapsulates knowledge of child development in the on-line

system, demonstrating the interrelationships of various subareas of development across domains. In

addition to assisting teams performing assessments, PALS can also be used as a training tool,

whereby professionals or preprofessioanls can learn about domains of development outside their

own disciplines and enhance their knowledge of transdisciplinary practice.
4-48 Independent Living and Community Integration

Small Business Innovative Research (SBIR), Phase I

Indiana

Scenario-Based e-Learning for Behavioral Parent Training

WisdomTools, Inc.

501 North Morton Street, Suite 102

Bloomington, IN 47404

marty@wisdomtools.com

http://www.wisdomtools.com

Principal Investigator: Martin A. Siegel, PhD; Elizabeth P. MacKenzie, PhD

Public Contact: 812/856-4201; Fax: 812/856-4205

Project Number: H133S020141

Start Date: September 23, 2002

Length: 6 months

NIDRR Officer: Kelly Henderson

NIDRR Funding: FY 02 $74,988

Abstract: This project investigates the application of Wisdom Tools Scenarios, a web-based elearning tool, to Behavioral Parent Training (BPT), a scientifically validated treatment for behavior

disorders in early childhood. Behavior disorders are common and interfere with social-emotional

development, academic success, and later vocational adjustment. The WisdomTools Scenarios elearning tool combines realistic scenarios with learning activities and facilitator-led group discussion. Teaching strategies include direct instruction, modeling, cooperative learning, role-play, practice, coaching, and positive reinforcement, which are established best practices for BPT.
Independent Living and Community Integration 4-49

Small Business Innovative Research (SBIR), Phase I

Virginia

Baby Rubrics

SVR, Inc.

1708 Hollindale Drive

Alexandria, VA 22306-2407

svr@verizon.net

Principal Investigator: Shirley Robson

Public Contact: 703/765-7105 (V/Fax)

Project Number: H133S020099

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Glinda Hill

NIDRR Funding: FY 02 $74,848

Abstract: This project designs a technology-enhanced assessment and teaching rubric to be used by

parents and others involved with children, ages birth to three, with and without special needs. “Baby

Rubrics” provides the framework for a video-based CD-ROM and curriculum. The CD-ROM

contains user-friendly, visually depicted developmental sequences providing examples of milestones

within five rubric domains: cognition, language, perceptual-motor development, vocational development, and social development. “Baby Rubrics” provides an assessment tool to help parents and

professionals determine a child’s developmental patterns in order to plan programs and intervention

strategies to enhance and support the child’s development in the five domains.
4-50 Independent Living and Community Integration

Small Business Innovative Research (SBIR), Phase I

Virginia

Development of a Prototype Illustration-Based Computer Textbook for

LD/LEP Students

Visibooks, LLC

3408A Stuart Avenue

Richmond, VA 23221-2313

chris@visibooks.com

http://www.visibooks.com

Principal Investigator: Chris Charuhas

Public Contact: 804/278-9188; Fax: 208/279-5336

Project Number: H133S020101

Start Date: October 1, 2002

Length: 6 months

NIDRR Officer: Bonnie Jones, EdD

NIDRR Funding: FY 02 $74,086

Abstract: This project develops computer textbooks for people with learning disabilities (LD) and

limited English proficiency (LEP). Current text-heavy computer textbooks make it difficult to learn

computer subjects. Visibooks develops simple, illustration-based computer books that have been

well received by people with dyslexia and those just learning English. By refining and expanding

this approach, Visibooks is developing computer textbooks tailored to the exact needs of LD/LEP

learners.
Independent Living and Community Integration 4-51

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

California

Role Models for Youth with Disabilities: Career Exploration for Youth

in Transition

InfoUse

2560 Ninth Street, Suite 216

Berkeley, CA 94710-2566

ljans@infouse.com

http://www.infouse.com

Principal Investigator: Lita Jans, PhD, 510/549-6509

Public Contact: 510/549-6520 (V); 510/549-6523 (TTY); Fax: 510/549-6512

Project Number: ED-01-CO-0127

Start Date: September 1, 2001

Length: 24 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: In this project InfoUse develops a series of multimedia products featuring adults with

disabilities as role models for transition-age students with disabilities. The products, developed for

students, their parents, and professionals who work with them, provide students with both an ongoing opportunity for career awareness and exploration, and an aid to eventual career selection. The

multimedia products depict adult role models, including people with different disabilities, from

different ethnic groups, who are working in a range of careers that require a variety of

postsecondary education and vocational preparation. The materials include a web site, CD-ROM,

videos, and curriculum guide.
4-52 Independent Living and Community Integration

Small Business Innovative Research (SBIR), Phase II

Colorado

NutraNet: An Internet-Based, Self-Directed Multimedia Software

System for Nutritional Education, Planning, and Implementation for

Individuals with Mental Retardation

AbleLink Technologies, Inc.

528 North Tejon Street, Suite 100

Colorado Springs, CO 80903

steve@assess.net

http://www.ablelinktech.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: ED-01-CO-0126

Start Date: September 17, 2001

Length: 24 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: This project develops a set of multimedia software modules to provide opportunities for

greater independence and self-direction in nutrition planning, grocery shopping, and meal preparation for individuals with mental retardation and other significant cognitive disabilities. For most

Americans, understanding, planning, and implementing healthy daily diets is a multifaceted and

potentially confusing process. The cognitive challenges faced by people with mental retardation

create even greater barriers in understanding the complexity of healthy diets, including nutritional

concepts such as the food groups, caloric values, saturated fats, cholesterol, daily recommended

allowances, comparison grocery shopping, and food portion sizes. This has resulted in a high level

of dependency on others in meal planning and execution, and high rates of weight-related health

problems for people with mental retardation. Phase I addressed the problems of dependency on

others and healthy meal planning by developing and testing NutraNet, an Internet-based multimedia

software system for independent and self-directed menu planning by individuals with mental retardation. Menus created with NutraNet by individuals with mental retardation were finished with

significantly greater independence (p <.001) than those created by the same individuals using their

current menu planning form. Additionally, the NutraNet menus were significantly better at meeting

the recommended minimum daily requirements of the five food groups (p <.003) and in producing

lower- cholesterol diets (p <.004). Phase II builds on these results by identifying and developing

additional nutritional health-related technology tools designed to be more independently useable by

non-reading students and adults.
Independent Living and Community Integration 4-53

Small Business Innovative Research (SBIR), Phase II

Colorado

Pocket Compass: A Palmtop Computer-Based Intelligent Aid for

Individuals with Mental Retardation to Increase Independence and

Self-Determination in Decision Making

AbleLink Technologies, Inc.

528 North Tejon Street, Suite 100

Colorado Springs, CO 80903-1158

steve@assess.net

http://www.ablelinktech.com

Principal Investigator: Daniel K. Davies

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: ED-01-PO-3664 (5-2)

Start Date: September 17, 2002

Length: 12 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $149,997

Abstract: This project develops and evaluates Pocket Compass, a decision- making aid for people

with mental retardation. Achieving greater independence and self- determination for individuals

with mental retardation depends upon the ability to make appropriate decisions independently. The

portable software system uses an expert-system approach combined with intelligent audio and visual

cues to help individuals navigate the cognitive process of making appropriate decisions. This device

is useful in acquiring decision-making skills relating to community involvement in areas such as

work, recreation, and independent living, where available choices can be rationally predicted. This

project completes Phase I of the Pocket Compass intelligent decision aiding system, builds a companion desktop software utility to help set up and manage decision assistance scenarios for multiple

individuals, and performs expanded field testing of the system to evaluate its applicability in supporting a wide range of types of decisions.
4-54 Independent Living and Community Integration

Small Business Innovative Research (SBIR), Phase II

Colorado

Pocket Voyager: Making Palmtop Computers Accessible to Individuals

with Mental Retardation

AbleLink Technologies, Inc.

528 North Tejon Street, Suite 100

Colorado Springs, CO 80903-1158

steve@assess.net

http://www.ablelinktech.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: ED-01-PO-3665 (5-1)

Start Date: September 17, 2002

Length: 24 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $149,997

Abstract: This project researches and develops Pocket Voyager, a specially designed multimedia

application that makes the features and programs on palmtop computers more independently accessible to individuals with mental retardation. Palmtop computers are becoming an increasingly

common platform for AT developers, in part because of their portability, integrated touch-screens,

multimedia capabilities, removable storage options, and PC slot accessories that extend the capacities of the system. Also, mainstream production makes them a more desirable development platform

than specially designed hardware units, with lower costs due to high-volume production runs and

significantly more research and development attention. Software products are being developed for

use by individuals with mental retardation in areas such as communication, schedule maintenance,

and task completion, to overcome the problems encountered when a user exits the closed environment of a specialized software application and must use the palmtop computer’s interface to, for

example, launch another desired application. This project includes full development of Pocket

Voyager’s navigational interface, the system’s setup interface (which is used by caregivers to customize the environment to mirror the needs of different end users), database development and

integration, design and development of other software utilities to provide access to typical functions

of palmtop computers such as phone contact lists, calculator functions, and emergency information.
Contents

Rehabilitation Research and Training Centers (RRTCs) ...................................................................... 3

Disability and Rehabilitation Research Projects .................................................................................. 7

Field-Initiated Projects (FIPs) .............................................................................................................. 9

Associated Disability Research Areas

Related disability research emphasizes knowledge areas that are cross-cutting and

essential to the support and refinement of disability research generally. The common

theme linking disability statistics, outcome measures, and the emerging fields of

disability studies, rehabilitation science, and disability policy research is that they all

provide essential frameworks and building blocks for the research and address

important issues in a meaningful way.

Associated Disability Research Areas 5-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Arizona

American Indian Rehabilitation Research and Training Center

Arizona University Center on Disabilities

Institute for Human Development

Northern Arizona University

Box 5630

Flagstaff, AZ 86011-5630

priscilla.sanderson@nau.edu

http://www4.nau.edu/ihd/airrtc/

Principal Investigator: Richard Carroll, PhD, 928/523-7033

Public Contact: Priscilla Lansing Sanderson, Project Director, 928/523-4791 (V); 928/523-1695

(TTY); Fax: 928/523-9127

Project Number: H133B980049

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 98 $595,000; FY 99 $605,000; FY 00 $605,000; FY 01 $739,500; FY 02

$600,000

Abstract: This Center, in a collaboration that includes the Consortia of Administrators for Native

American Rehabilitation (CANAR) and other Rehabilitation Research and Training Centers, develops, implements, and conducts research and training activities around four core areas. Eight research

projects and six training projects focus on: (1) investigating and analyzing existing disability and

employment data, and recommending methodology for planning and evaluating employment services for American Indians and Alaska Natives; (2) recommending successful strategies to improve

employment outcomes, including existing employment and VR service practices for American

Indians and Alaska Natives with disabilities on or off reservations; (3) developing and evaluating

innovative and culturally appropriate VR services for the employment of American Indians and

Alaska Natives; and (4) disseminating results of the data collection and evaluation of model employment services to a range of relevant audiences, using appropriate accessible formats. Consultation

with researchers, CANAR, and the training team helps develop a dissemination method that is

accessible and acceptable for each respective target community. Information and resources are

developed and disseminated to providers, tribal and state vocational rehabilitative agencies, consumers, and Regional Continuing Education Programs. This project participates in the NIDRR Scholars

program, providing motivated undergraduates with internship experience in disability research.
5-4 Associated Disability Research Areas

Rehabilitation Research and Training Centers (RRTCs)

California

Disability Statistics Rehabilitation Research and Training Center

University of California/San Francisco

3333 California Street, Room 340

San Francisco, CA 94118

distats@itsa.ucsf.edu

http://dsc.ucsf.edu

Principal Investigator: Mitchell P. LaPlante, PhD

Public Contact: Barbara Wenger, Information Specialist, 415/502-5210 (V, General Information);

415/502-5217 (V, Wenger); 415/502-5216 (TTY); Fax: 415/502-5208

Project Number: H133B980045

Start Date: December 1, 1998

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 98 $700,000; FY 99 $750,000; FY 00 $700,000; FY 01 $700,000; FY 02

$700,000

Abstract: The Center conducts research in the demography and epidemiology of disability including costs, employment statistics, health and long-term care statistics, and statistical indicators.

Statistical information is disseminated through published statistical reports and abstracts, journals,

professional presentations, and a publications mailing list. Training activities and resources (such as

a predoctoral program) disseminate scientific methods, procedures, and results to both new and

established researchers, policy-makers, and other consumers, and assist them in interpreting statistical information. A National Disability Statistics and Policy Forum is conducted periodically to foster

dialogue between people with disabilities and representative organizations, researchers, and policymakers.
Associated Disability Research Areas 5-5

Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Policies Affecting

Families of Children with Disabilities

University of Kansas

Beach Center on Disability

Haworth Hall, Room 3136

1200 Sunnyside Avenue

Lawrence, KS 66045-7534

turnbull@ku.edu

http://www.beachcenter.org

Principal Investigator: Ann Turnbull, EdD; H. R. Turnbull, LLM

Public Contact: H. R. Turnbull, LLM, 785/864-7600; Fax: 785/864-7605

Project Number: H133B980050

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 98 $650,000; FY 99 $650,000; FY 00 $650,000; FY 01 $650,000; FY 02

$650,000

Abstract: This project assesses policies and services and their impact on families’ quality of life,

focusing on four priorities: (1) developing an analytical framework for policy and service analysis;

(2) developing measurement tools that apply state-of-the-art legal and policy analysis methodologies

to the assessment of policies, service systems, and family outcomes; (3) identifying impacts of

partnership (including interagency collaboration and coordination) on family outcomes; and (4)

conducting research with families from diverse backgrounds in several communities and states

(Kansas, Louisiana, and North Carolina). This research agenda is composed of five comprehensive

training projects, six dissemination projects, and five technical assistance projects. Training activities include: (a) pre-service training and the preparation of three textbooks; (b) in-service training

that helps service providers and families form community coalitions using the measurement toolkit;

and (c) sponsorship of an international state-of-the-science conference. Dissemination activities

include: (a) networking with federal agencies; (b) developing and disseminating the measurement

toolkit, six users’ manuals, and a management information software package; and (c) publishing

articles in peer-reviewed newsletters, research briefs, fact sheets, a web site, and a newsletter. Technical assistance focuses on: (a) enhancing federal and state policies; (b) conducting summer institutes with state-local partners on policy and service analyses; and (c) developing partnerships with

federal agency liaisons, grantees, and key family and professional organizations to mentor them in

using the results of project research to enhance policies and services.
5-6 Associated Disability Research Areas

Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center on Measuring

Rehabilitation Outcomes

Boston University

Sargent College of Health and Rehabilitation Sciences

635 Commonwealth Avenue

Boston, MA 02215

rmonarch@bu.edu

http://www.bu.edu/cre/rehaboutcomes

Principal Investigator: Alan M. Jette, PhD, 617/353-2704

Public Contact: Roseanne Monarch, 617/353-1297; 617/353-3277; Fax: 617/358-1355

Project Number: H133B990005

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $699,736; FY 00 $699,868; FY 01 $699,745; FY 02 $698,812

Abstract: This Center develops new, more effective outcomes measurement tools and applies these

tools to determine the effectiveness of medical rehabilitation interventions. Research components

include: (1) identifying gaps in existing outcome measures and developing new instruments that

address these gaps as part of a rehabilitation outcomes system; (2) critically evaluating the newly

developed instruments against tools currently in use; (3) implementing the newly developed outcome instruments across impairment groups and across rehabilitation settings to assess their feasibility, responsiveness, and validity; (4) investigating the extent to which specific rehabilitation interventions affect outcomes following the onset of a stroke; and (5) applying modern psychometric

techniques to develop dynamic outcome instruments that can also be used with individual patients in

a clinical setting. Several components have been designed to enhance the translation of research

findings into rehabilitation practice and to provide stakeholders with the opportunity to provide

input into the Center including surveys of the use of medical rehabilitation outcomes data, consensus

conferences, institutes, fellowships, a web site, and a consumer guide to choosing postacute care

services.
Associated Disability Research Areas 5-7

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

Emergent Disability, Systems Change, and Employment of People with

Disabilities

University of Massachusetts

Institute for Community Inclusion

100 Morrissey Boulevard

Boston, MA 02115

susan.foley@umb.edu

Principal Investigator: Susan Foley, PhD; Doris Hamner, PhD, 617/287-4317 (Foley); 617/287-

4364 (Hamner)

Public Contact: Susan Foley, PhD, 617/287-4317; Fax: 617/287-4352

Project Number: H133A021503

Start Date: December 1, 2002

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $300,000

Abstract: This project examines state service systems to document the impact of federal policies

and practices on systems change and how such changes affect people with disabilities. Research

activities include: (1) analysis of national, state, and local data collection systems and actual employment outcomes for people with disabilities; (2) documentation of data sets being used by state

agencies to measure effectiveness and how these could be used to examine outcomes for people with

disabilities; and (3) examination of how people with disabilities fare within the existing system and

challenges they may face through direct consumer research. The goals of the project are: (1) to

develop a clear description and presentation of how federal policies impact systems change efforts;

(2) to identify how these policies and practices affect the lives of people with disabilities; (3) to

identify procedures for a more integrated approach to gathering data that better explains the consumer outcomes of these services; and (4) to document how people with disabilities progress within

the service system.
5-8 Associated Disability Research Areas

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

California

Disability Rights and the Independent Living Movement: The

Formative Years Nationwide

University of California/Berkeley

The Bancroft Library

UC Berkeley, 486

Berkeley, CA 94720-6000

tsalazar@library.berkeley.edu

http://bancroft.berkeley.edu/collections/drilm.html

Principal Investigator: Charles B. Faulhaber, PhD, 510/642-3781

Public Contact: Theresa Salazar, 510/643-8153; Fax: 510/642-7589

Project Number: H133G000083

Start Date: August 1, 2000

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 00 $150,000; FY 01 $150,000; FY 02 $150,000

Abstract: This project creates a national platform for comprehensive research on the origins and

leadership of the independent living and disability rights movement in the United States. An experienced team collects and preserves oral histories and archival records of pivotal leaders and key

organizations across the country, before they are irretrievably lost. The documentation that is generated about the formative years of the movement is to be made widely available for research use,

both on the Internet and in appropriate archival repositories. The project includes three main components: (1) oral history interviews with 50 to 60 national and regional leaders of the movement, (2)

collection and preservation of historical records in archival repositories, and (3) the creation of an

Internet-based Disability Rights and Independent Living Movement Digital Archive that includes

oral histories, selected documents, and finding aids for collected materials at all repositories.
Associated Disability Research Areas 5-9

Field-Initiated Projects (FIPs)

Florida

Equiprecise Measurement for ICIDH-2 Classification of Activity: An

Innovative Solution for Evaluating the Worldwide Incidence and

Prevalence of Disability

University of Florida

Department of Occupational Therapy

P.O. Box 100164

Gainesville, FL 32610-0164

cvelozo@hp.ufl.edu

Principal Investigator: Craig A. Velozo, PhD, OTR

Public Contact: 352/846-1950; 352/333-3115; Fax: 352/846-1042

Project Number: H133G000227

Start Date: June 1, 1999

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 00 $149,459; FY 01 $148,388; FY 02 (No-cost extension through 9/30/2003)

Abstract: This project develops an efficient and precise activity measurement system that is accessible and useful to individuals with disabilities, consumer groups, health care service providers, and

policy-makers. In the context of people with musculoskeletal/connective tissue disorders or orthopedic impairments, Rasch analysis and Computerized Adaptive Testing (CAT) techniques are used,

applying equiprecise measurement to the categories of movement, moving around, and daily life

activities as defined in the Activity dimension of the ICIDH-2. CAT achieves efficiency by selectively presenting questions at the individual’s ability level, and equiprecise measurement refers to

the potential to have high precision in measuring a trait or construct across the entire range of that

trait or construct.
5-10 Associated Disability Research Areas

Field-Initiated Projects (FIPs)

Illinois

Re-Defining Wholeness: Formulating a Minority Group Model of

Disability Identity Development

University of Illinois/Chicago

1640 West Roosevelt Road, M/C 626

Chicago, IL 60608-6904

cg16@uic.edu

Principal Investigator: Carol J. Gill, PhD

Public Contact: 312/355-0550; 312/413-0453 (TTY); Fax: 312/413-2918

Project Number: H133G990110

Start Date: May 1, 1999

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 99 $149,915; FY 00 $146,732; FY 01 $148,293; FY 02 (No-cost extension

through 4/30/2003)

Abstract: The project constructs and validates a theoretical model of disability identity development

analogous to models formulated for ethnic, racial, gay/lesbian, and women’s identity development.

The model has significant value in generating testable hypothesis in disability research by contributing a more refined and differentiated understanding of intragroup developmental differences. The

goals of the project are: (1) to illuminate the process by which people with disabilities develop a

positive identity that integrates their disability status, resulting in a sense of wholeness that fortifies

both their resilience to social devaluation and their efforts to live fully in society; (2) to formulate a

comprehensive model of disability identity development that takes into account the experiences of

people with various disabilities from a range of social/cultural backgrounds; (3) to validate the

model by testing predicted relations between disability identity categories and other variables that

are theoretically relevant to identity development; (4) to use the model to investigate how people

with disabilities who also have other minority group status (based on race, ethnicity, gender, or

sexual orientation) develop disability identity, and organize their intersecting identities and multiple

group affiliations; and (5) to disseminate this information to people with disabilities, their families,

professionals, and advocates so it can be used to support positive identity development in children,

adolescents, and adults with disabilities.
Associated Disability Research Areas 5-11

Field-Initiated Projects (FIPs)

Illinois

A Multilevel Analysis of the Relationship Between Domestic Violence

and Disability

University of Illinois/Chicago

Department of Occupational Therapy

1919 West Taylor Street, M/C 811

Chicago, IL 60612-7250

helfrich@uic.edu

Principal Investigator: Christine Helfrich, PhD

Public Contact: 312/996-4626; Fax: 312/413-0256

Project Number: H133G990144

Start Date: September 1, 1999

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 99 $149,853; FY 00 $149,949; FY 01 $149,944

Abstract: This project studies the interaction between domestic violence and disability. Detailed

case studies are developed for 15 women who are domestic violence victims with a disability, who

are interviewed and observed in routine activities of daily living over a two-year period. This project

is designed to begin building an understanding of the relationships and consequences of domestic

violence and disability through a multimethod approach. Research objectives are: (1) to document

the extent and nature of impairment/disability among women who are identified as victims of domestic violence in a municipal hospital; (2) to document the disability-related characteristics of

women who present to an emergency shelter for domestic violence; (3) to document the long-term

service needs of women with disabilities who are victims of domestic violence; and (4) to disseminate project findings in appropriate formats to policy-makers, service providers, and consumers.
5-12 Associated Disability Research Areas

Field-Initiated Projects (FIPs)

Illinois

An Analysis of the Demography of Living Standards, Health, and

Poverty of Persons with a Disability Living in Third World Nations

Based on Data from the World Bank

University of Illinois/Chicago

1640 West Roosevelt Road

Chicago, IL 60608-7205

gfujiura@uic.edu

http://www.uic.edu/depts/idhd/ced

Principal Investigator: Glenn T. Fujiura, PhD

Public Contact: 312/413-1977; Fax: 312/413-4098

Project Number: H133G010139

Start Date: November 1, 2001

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: This project analyzes World Bank economic development data in 24 developing nations

of the world. The goal of the analysis is to describe basic demographics and their relationship to the

living standards of persons with a disability. The overall goals of the project are to elevate awareness

of disablement issues globally, to assist local advocacy efforts in raising awareness of disability as a

basic development issue, and to stimulate a dialogue regarding the international role in the evolving

paradigm of disability. Primary areas of emphasis are: (1) characterization of employment, economic status, and social well-being (i.e., access to health services, supports, assets); (2) estimation of

the magnitude of disablement within nations; (3) identification of subgroups within each nation that

are most vulnerable to disablement; (4) analysis of the status of women with disabilities; (5) identification of unique regional concerns; and (6) broad comparisons of the living standards in the developing world to those of the U.S. The project employs systems initiated by the World Bank in 1980

called the Living Standards Measurement Survey (LSMS) project, which involves sophisticated

population-based household surveys on economic behavior and living standards in underdeveloped

nations. This project is a collaborative effort by the Department of Disability and Human Development at the University of Illinois/Chicago (UIC) and Disabled Peoples’ International (DPI). The

project operationalizes the principles of participatory action research by employing the expertise of

regional representatives of the DPI, a consumer-driven, cross- disability network with member

organizations in more than 158 countries, of which more than half are in the developing world.
Associated Disability Research Areas 5-13

Field-Initiated Projects (FIPs)

Illinois

Differences in Mental Health Service Satisfaction Among Clients

Interviewed by Consumer and Non-Consumer Researchers Using

Computer-Assisted Personal Interview (CAPI) Technology

University of Illinois at Chicago

RRTC on Psychiatric Disability

104 South Michigan Avenue, Suite 900

Chicago, IL 60603

pickett@psych.uic.edu

http://www.psych.uic.edu/uicnrtc

Principal Investigator: Susan Pickett-Schenk, PhD

Public Contact: 312/422-8180, ext. 17; Fax: 312/422-0740

Project Number: H133G020027

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $150,000

Abstract: This study compares differences in service satisfaction ratings made by clients interviewed by researchers who are and are not mental health consumers to better understand mental

health consumers’ evaluations of the services they receive. In a randomized design, 400 clients

complete satisfaction surveys administered by mental health consumer researchers and 400 clients

complete satisfaction surveys administered by non-consumer researchers. Computer-assisted personal interview (CAPI) technology is used to administer the satisfaction surveys. Study results

provide important information on clients’ satisfaction with community mental health programs, the

effect of researchers’ consumer status on program satisfaction ratings, and the use of CAPI technology in mental health program evaluation.
5-14 Associated Disability Research Areas

Field-Initiated Projects (FIPs)

Massachusetts

Rehabilitation Readiness Tool for Latinos with Psychiatric Disabilities

Boston University

Latino Initiatives at the Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215

mertoro@bu.edu

http://www.bu.edu/cpr

Principal Investigator: Maria Restrepo-Toro, MS; Marianne Farkas, PhD

Public Contact: Maria Restrepo-Toro, MS, 617/353-3549; Fax: 617/353-7700

Project Number: H133G020181

Start Date: September 1, 2002

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $149,776

Abstract: This project develops a Spanish Guide to Assessing and Developing Rehabilitation

Readiness for Latino Consumers with Serious Psychiatric Disabilities. Due to various service barriers, Latinos often do not benefit from vocational rehabilitation innovations. Individuals of Latino

descent typically do not access services, or disengage quickly from existing services; they turn to

families or other natural supports for assistance. The present proposal addresses several barriers

related to Latino service underutilization, including a lack of understanding of how to begin services

in a way that matches the Latino clients’ needs (i.e., readiness to engage) and the absence of accompanying readiness educational materials in Spanish. The guide aids in self-assessment of readiness to

engage in rehabilitation, makes suggestions for determining future services based on level of readiness for rehabilitation, and includes a series of activities to help individuals develop rehabilitation

readiness. The project is supported by the Center for Psychiatric Rehabilitation at Boston University

in collaboration with Casa Primavera, a program from Center House, Inc. in Boston, and Maria

Sardinas Center (MSC) and South Bay Guidance Center (SBGC), both programs of Community

Research Foundation (CRF), a private nonprofit organization in San Diego, CA.
Associated Disability Research Areas 5-15

Field-Initiated Projects (FIPs)

Minnesota

Secondary Analyses of Persons with Disabilities in the 1994-1995

Disability Supplement to the National Health Interview Survey and in

1999 and 2000 NHIS Surveys

University of Minnesota

Institute on Community Integration

214 B Pattee Hall

150 Pillsbury Drive Southeast

Minneapolis, MN 55455

larso072@umn.edu

http://rtc.umn.edu/nhis

Principal Investigator: Sheryl Larson, PhD; K. Charlie Lakin, PhD, 612/624-6024 (Larson); 612/

624-5005 (Lakin)

Public Contact: 612/624-6024; Fax: 612/625-6619

Project Number: H133G020037

Start Date: August 01, 2002

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $135,670

Abstract: This project conducts and disseminates the results of focused secondary analyses of data

on persons with developmental and other disabilities within the 1994-1995 Disability Supplement to

the National Health Interview Survey (NHIS-D) and within 1999 and 2000 NHIS surveys. The

combined 1994 and 1995 NHIS-D is the most comprehensive survey of non-institutionalized persons with disabilities ever conducted in the United States and is the first national survey to include

persons with disabilities of all ages. The analyses focus on the 3,076 sample members with mental

retardation (MR) and/or developmental disabilities (DD) and on the 12,078 adults and 1,536 children who have one or more substantial functional limitations but who do not have MR or DD. The

analyses build on earlier research using the NHIS-D in which operational definitions for mental

retardation, developmental disabilities, and functional limitations were developed and used for

estimating prevalence, demographics, and service use of persons with MR and/or DD. Data analysis

topics include: (1) demographic, functional, and health characteristics; (2) in-home services and

supports; (3) access to health care; (4) services, devices, and technology; (5) households with parents who have disabilities; and (6) social roles and experiences of adults. In each of these areas, four

disability groups are examined: those with mental retardation only, those with developmental disabilities only, those with mental retardation and developmental disabilities, and those with substantial functional limitations but not mental retardation or developmental disabilities. Of particular

interest is the comparison between working-age adults with developmental disabilities and those

with three or more functional limitations whose disabilities first occurred in adulthood.
5-16 Associated Disability Research Areas

Field-Initiated Projects (FIPs)

New York

Utilization and Analysis of Census 2000 Data to Inform Disability

Advocacy and Employment Policy

Cornell University

Program on Employment and Disability

Ithaca, NY 14853

ajh29@cornell.edu

http://www.disabilitystatistics.org

Principal Investigator: Andrew J. Houtenville, PhD

Public Contact: 607/255-5702 (V); 607/255-2891 (TTY); Fax: 607/255-3274

Project Number: H133G020117

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $150,000

Abstract: This project analyzes and disseminates disability employment statistics gleaned from the

long-form dataset of the 2000 U.S. Census. A unique feature of the statistical summary is the disaggregation of data at the state and if possible, county level. The project generates a “user friendly”

report and web site designed for advocacy groups and other end users of disability employment

statistics. The web site is designed in a “question-and-answer” format, based on a model currently

employed by Cornell’s RRTC for Economic Research on Employment Policy. The project also

analyses and disseminates Public Use Microdata Sample files, which allow the summary and reporting of data at the state and local level. Research also includes testing of statistical models purporting

to describe the “disablement process” and barriers to employment.
Associated Disability Research Areas 5-17

Field-Initiated Projects (FIPs)

South Carolina

A Six-Year Longitudinal Study of Community Integration, Subjective

Well-Being, and Health After Spinal Cord Injury: Relationship with

Gender, Race/Ethnicity, and Environmental Factors

Medical University of South Carolina

College of Health Professions

77 President Street

Charleston, SC 29425

krause@musc.edu

Principal Investigator: James Krause, PhD, 843/792-1337

Public Contact: Darrell Brill, 843/792-3792; Fax: 843/792-0710

Project Number: H133G020218

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Theresa San Agustin MD

NIDRR Funding: FY 02 $149,734

Abstract: This longitudinal study identifies changes in quality of life and health outcomes over a

six-year period as a function of gender, race/ethnicity, and environmental factors. Follow-up data are

collected from 466 participants from three collaborating sites that include the Shepherd Center,

Rancho Los Amigos National Rehabilitation Center, and Craig Hospital. The same core outcome

measures that were used during the preliminary data collection in 1997-98 are being re-administered

by phone. Measures include the Craig Handicap Assessment Reporting Technique, the Older Adult

Health and Mood Questionnaire, the Reciprocal Support Scale, the Behavioral Risk Factor Surveillance Survey and the Life Situation Questionnaire. In addition, newly developed measures are being

used to identify the relationship between environmental factors and adverse outcomes. These measures include the Craig Hospital Inventory of Environmental Factors; the Acculturation, Integration,

Marginalization, and Segregation; and the assimilation factor of the Community Integration Measure. A 2x4x2 longitudinal factorial design is being used to analyze the data. A mediational model is

being used to identify the extent to which differences in environmental factors explain any associations of gender and race-ethnicity with participation, subjective well- being, health behaviors, and

health outcomes.
Knowledge Dissemination and Utilization

Dissemination and utilization are the tools through which to ensure that people with

disabilities become fully integrated and participating members of society. NIDRR’s

dissemination and utilization efforts ensure the widespread distribution, in usable

formats, of practical scientific and technological information generated by research,

demonstration, and related activities. NIDRR’s challenge is to reach diverse and

changing populations, to present research results in many different and accessible

formats, and to use technology appropriately.

Contents

Disability and Rehabilitation Research Projects .................................................................................. 3

Field-Initiated Projects (FIPs) ............................................................................................................ 15

ADA Technical Assistance Projects ................................................................................................... 17

Assistive Technology Technical Assistance Projects ......................................................................... 18

NIDRR Contracts ............................................................................................................................... 20

Knowledge Dissemination and Utilization 6-3

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Alabama

National Spinal Cord Injury Statistical Center

University of Alabama/Birmingham

SRC 515

1717 Sixth Avenue, South

Birmingham, AL 35249-7330

nscisc@uab.edu

http://www.spinalcord.uab.edu/show.asp?durki=24480

Principal Investigator: Michael J. DeVivo, DrPH, 205/934-3320

Public Contact: Vicki Farris, 205/934-5049; Fax: 205/934-2709

Project Number: H133A011201

Start Date: July 1, 2001

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $349,988; FY 02 $350,000

Abstract: The Statistical Center has the following objectives: (1) establish the appropriate IT system; (2) train and provide technical assistance to the Model SCI centers; (3) communicate with

NIDRR and the centers to ensure quality of the items in the database; (4) demonstrate the capacity to

conduct and facilitate research from the database; (5) link to other related databases; (6) incorporate

culturally appropriate methods of data collection and dissemination, including culturally sensitive

measurement approaches; (7) demonstrate the capacity to provide technical assistance to the Model

SCI centers and other related projects regarding database development and maintenance.
6-4 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

California

National Resource Center for Parents with Disabilities

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

tlg@lookingglass.org

http://www.lookingglass.org

Principal Investigator: Megan Kirshbaum, PhD; Paul Preston, PhD

Public Contact: Paul Preston, PhD, 510/848-1112 (V); 800/644-2666 (V); 800/804- 1616 (TTY);

Fax: 510/848-4445

Project Number: H133A980001

Start Date: April 1, 1998

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 98 $500,000; FY 99 $500,000; FY 00 $500,000; FY 01 $500,000; FY 02

$500,000

Abstract: The National Resource Center for Parents with Disabilities focuses on the 10.9 percent of

U.S. families with children in which one or both parents have a disability—nearly 9 million parents.

The Center provides: (1) accessible and disability-appropriate information regarding parenting with

a disability to parents, potential parents, disability advocates, and legal, medical, and social service

providers; (2) training to parents with disabilities, potential parents, and service providers; (3)

technical assistance that increases informed practice and informed decisions; (4) program consultation that increases local and regional services that are accessible and disability-appropriate. To

accomplish these goals, project researchers: (1) consolidate and disseminate information and resources, (2) synthesize and disseminate materials from other agencies and organizations, (3) develop

and disseminate new materials tailored to address the specific needs of parents with disabilities and

service providers, (4) expand the national availability of training and technical assistance to parents

with disabilities and service providers, and (5) develop curricula to train future service providers.

Parenting areas designated as highest priority are: custody, pregnancy and birthing, adoption, adaptive parenting equipment, and general parenting information. The project is staffed by nationally

recognized experts regarding parents with disabilities, the majority of whom are parents with disabilities or family members of parents with disabilities.
Knowledge Dissemination and Utilization 6-5

Disability and Rehabilitation Research Projects

California

Ideas for the New Millennium

World Institute on Disability

510 - 16th Street, Suite 100

Oakland, CA 94612-1520

kathy@wid.org

http://www.wid.org

http://www.disabilityworld.org

Principal Investigator: Kathy Martinez, 510/251-4326

Public Contact: Jennifer Geagan, 510/251-4310; Fax: 510/763-4109

Project Number: H133A990006

Start Date: October 1, 1999

Length: 60 months

NIDRR Officer: Eva M. Gavillán, EdD

NIDRR Funding: FY 99 $400,000; FY 00 $400,000; FY 01 $400,000; FY 02 $400,000

Abstract: This project creates a productive international exchange of information and expertise on

disability and rehabilitation, connecting disability research and advocacy leadership in ten target

countries with their peers in the United States. At the heart of this exchange is an online information

system that captures innovation, links government officials, policy-makers, disability leaders, rehabilitation specialists, researchers and innovators in a lively exchange of ideas, networks, resources,

and contacts. This sustainable network of information and resources on substantive disability issues

is available across professions, cultures, and communities. The issues critical to the information

exchanges are: (1) disability rights and independent living, (2) employment and entrepreneurial

activity, (3) access and technology, (4) mass media images, and (5) influence through governance.

Using a civil rights perspective, the project addresses disability policy, law, advocacy, research, and

related developments in the ten countries. The project systematically promotes international exchange, reports results, and analyzes their significance in consumer-friendly formats and forums,

including a comprehensive database, five annual symposia, as well as a monthly Webzine and online

exchange of information in English and Spanish. The project collaborates with five disability-led

organizations with substantial international experience.
6-6 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

California

Disability and Rehabilitation Research Project to Disseminate

Independent Living Research Information Through the Mass Media to

Persons with Disabilities

Center for an Accessible Society

Exploding Myths, Inc.

2980 Beech Street

San Diego, CA 92102

cjones@accessiblesociety.org

http://www.accessiblesociety.org

Principal Investigator: Cynthia Jones

Public Contact: 619/232-2727, ext. 111 (V); 619/234-3130 (TTY); Fax: 619/234-3155

Project Number: H133A980045

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 98 $299,991; FY 99 $299,994; FY 00 $299,988; FY 01 $299,996; FY 02

$299,992

Abstract: This project disseminates research information on Independent Living (IL) through the

popular mass media. Like many groups who rely on well-planned programs of media dissemination

involving media relations firms, this project hires and works proactively with a media relations firm

and selected researchers to obtain coverage of IL issues in the popular mass media. The goal is to

create the recognition that the target population and its issues require ongoing, in-depth coverage.

The project conducts a proactive “media watch” to identify opportunities to insert an IL perspective

into public debates on policy issues in the popular mass media. As part of that watch, the project

establishes a “rapid response” program to provide members of the popular mass media with resources among IL researchers, and to generate a response from the IL community to stories that omit

the IL perspective. The project manages an interactive web site to provide information and resources

about IL research to members of the popular mass media, researchers, and consumers.
Knowledge Dissemination and Utilization 6-7

Disability and Rehabilitation Research Projects

Georgia

TECH CONNECTIONS: Improving the Utilization of Existing and

Emerging Rehabilitation Technology in the State Vocational

Rehabilitation Program

United Cerebral Palsy Associations, Inc.

490 Tenth Street Northwest

Atlanta, GA 30318

techconnections@crt.gatech.edu

http://www.techconnections.org

Principal Investigator: Anthony J. Langton, MS

Public Contact: 877/835-7335; 404/385-0633; Fax: 404/385-0641

Project Number: H133A980052

Start Date: October 1, 1998

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 98 $499,970; FY 99 $500,000; FY 00 $499,978; FY 01 $499,962; FY 02

$499,960

Abstract: TECH CONNECTIONS facilitates the use of rehabilitation technology in state VR

programs. This customer-responsive, customer-driven, training, technical assistance, and dissemination project features: (1) a multifaceted approach to training that builds capacity through new curricula and new supporting materials that augment existing materials, for use by project-trained

rehabilitation and university staff; (2) regional training forums, topic-specific audio conferences, and

satellite video training; (3) individualized technical assistance and information about the AT, on a

case-by-case basis, for rehabilitation professionals and for their customers with disabilities; and (4)

broad-based outreach and dissemination to people who provide AT. Training includes an Internetbased discussion group open to rehabilitation professionals, people with disabilities, and other

interested parties and a mentoring program pairing experienced technology users with rehabilitation

professionals or people with disabilities seeking AT. Additional methods of outreach include project

announcements circulated to rehabilitation, education, and disability Internet discussion lists; presentations at conferences and workshops; a toll-free phone number; and an Internet-based newsletter.

United Cerebral Palsy Association works in collaboration with the Center for Rehabilitation Technology and the Southeast Disability and Business Technical Assistance Center.
6-8 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

Kansas

Improving Research Information Dissemination and Utilization to

Promote Independent Living (The RIIL Project)

University of Kansas

Research and Training Center on Independent Living

Schiefelbusch Institute for Life Span Studies

4089 Dole Building

Lawrence, KS 66045

rtcil@ukans.edu; jbudde@dole.lsi.ukans.edu; glen@ukans.edu

http://www.lsi.ukans.edu/rtcil/rtcil.htm

http://www.GetRIIL.org

Principal Investigator: James Budde, EdD; Glen White, PhD

Public Contact: 785/864-4095; Fax: 785/864-5063

Project Number: H133A980048

Start Date: January 1, 1999

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 98 $299,999; FY 99 $299,999; FY 00 $299,999; FY 01 $299,999; FY 02

$299,999

Abstract: This project increases the amount of relevant and useful independent living (IL) information to consumers to enable them to reach their IL goals more effectively. Consumer-empowered

teams determine the need and provide input for research and development over the course of each

project. Activities include: (1) completion of needs and barriers survey, how input from consumers

can help identify priorities, and using this knowledge to create a research primer; (2) developing an

information infrastructure for research that includes a searchable and interactive IL database and

uses existing Internet tools such as chat rooms and Internet discussion lists; (3) providing technical

assistance to consumers, family members, policy-makers, and practitioners; (4) training practitioners

and advocates to provide technical assistance; and (5) assisting researchers in developing research

reports for consumers, family members, and practitioners involving consumers in their research. To

date, several products are available that include a brief of the initial survey, guidelines to research

for nonresearchers, the “Know Way Guide” a guide for consumers to better understand research, and

a review of literature related to writing for nonresearchers. This project is partnered with the Independent Living Research and Utilization Project at The Institute for Rehabilitation Research (TIRR).

This project participates in the NIDRR Scholars program, providing motivated undergraduates with

internship experience in disability research.
Knowledge Dissemination and Utilization 6-9

Disability and Rehabilitation Research Projects

Massachusetts

Web Accessibility Initiative, Phase II

Massachusetts Institute of Technology

W3C Web Accessibility Initiative

MIT/LCS Room NE43-355

200 Technology Square

Cambridge, MA 02139

jbrewer@w3.org

http://www.w3.org/WAI

Principal Investigator: Tim Berners-Lee, 617/253-5702

Public Contact: Judy Brewer, 617/258-9741

Project Number: H133A000500

Start Date: October 1, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $499,999; FY 01 $499,998; FY 02 $500,000

Abstract: The project addresses newly emerging accessibility issues in the web industry, and expands implementation of existing web accessibility solutions. Activities include: (1) developing

advanced versions of WAI guidelines and techniques to cover advanced web technologies such as

XML applications; (2) developing a superset of universal design guidelines by integrating deviceaccessibility issues in 25 or more W3C specifications; (3) documenting techniques for accessibility

features of W3C specifications in appendices and example code; (4) expanding techniques for

retrofitting and validating conformance with WAI guidelines; (5) developing resource packages for

accessibility of E-Commerce and distance learning; (6) providing in-house technical assistance to

industry on the design of accessible web sites and software; (7) providing and monitoring a liaison

to research and development projects that affect future web accessibility; and (8) providing technical

assistance to research projects to promote adoption of universal design approaches in development

of new web technologies. Support for the Phase I project enabled WAI to address cross-disability

web accessibility issues successfully through a broad range of activities. It has provided a forum

where scores of organizations internationally have combined their efforts to improve the accessibility of the web. For tens of millions of Americans with visual, hearing, physical, or cognitive disabilities, web accessibility provides the key to the information society: to the online commercial

world, educational opportunity, employment opportunity, workplace communication, government

services, recreation, and more.
6-10 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

New Jersey

Traumatic Brain Injury National Data Center

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

kwood@kmrrec.org

http://www.tbindc.org

Principal Investigator: Mitchell Rosenthal, PhD, 973/243-6971

Public Contact: Kenneth Wood, PhD, 973/243-6811; Fax: 973/243-6990

Project Number: H133A011403

Start Date: July 1, 2001

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 01 $348,187; FY 02 $348,133

Abstract: Goals of this national data center include: (1) data collection improvements through

development of an interactive web-based syllabus for the use of Traumatic Brain Injury Model

Systems (TBIMS) staff, researchers and others that improves the quality and cost-effectiveness of

data collection efforts; (2) a new web site featuring a searchable TBI Model Systems Research and

Publication Registry; (3) enhanced statistical and technical consultation services to streamline the

database, employ innovative statistical techniques to compensate for incomplete or missing data,

make comparisons with other datasets, improve measurement tools and prediction models, and

enhance analysis of longitudinal data; (4) improved data collection methods based on the “focus

group” feedback received from the data collectors at the other centers, which include awareness and

incorporation of techniques designed to improve cultural sensitivity of data collection instruments

and data collection methodologies used in the model systems; (5) consumer dissemination of the

latest research results and innovative demonstration projects from the model systems through a

partnership with the national Brain Injury Association (BIA); (6) continued leadership in TBIMS

dissemination activities through Facts and Figures, TBIMS and BIA web sites, NCDDR dissemination programs, journal publications, and TBIMS conferences; (7) continued development of policies

that allow for public access to data, while protecting the confidentiality of subjects in the database

and incorporating the perspectives of both NIDRR and the TBIMS researchers and data management

teams; (8) collaboration with the NIDRR SCI and Burn Data Centers to develop advanced methods

of database function, data acquisition, data quality assurance, and general Data Center operations;

and (9) new projects with CDC and other programs whose database have similar TBI populations.
Knowledge Dissemination and Utilization 6-11

Disability and Rehabilitation Research Projects

New York

Center for International Rehabilitation Research Information and

Exchange (CIRRIE)

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

515 Kimball Tower

Buffalo, NY 14214

ub-cirrie@buffalo.edu

http://cirrie.buffalo.edu

Principal Investigator: John Stone, PhD, 716/829-3141, ext. 125

Public Contact: Marcia E. Daumen, 716/829-3900, ext. 146; Fax: 716/829-2211

Project Number: H133A990010

Start Date: September 1, 1999

Length: 60 months

NIDRR Officer: Eva M. Gavillán, EdD

NIDRR Funding: FY 99 $400,000; FY 00 $400,000; FY 01 $400,000; FY 02 $400,000

Abstract: The mission of this Center is to improve rehabilitation services by obtaining and disseminating information on international rehabilitation research and practices. CIRRIE has four primary

objectives: (1) develop and maintain an international research database, searchable from an accessible web site and organized according to the major types of rehabilitation research, as delineated in

the NIDRR Long-Range Plan; (2) assist grantees of the Office of Special Education and Rehabilitation Services (OSERS) to establish an international component within their domestic conferences by

facilitating and subsidizing participation by international experts and involve U.S. experts in international conferences; (3) conduct an international exchange of research and technical assistance experts based on requests from rehabilitation research centers in the U.S. and other countries; and (4)

disseminate information to rehabilitation service providers on the cultural issues relevant to meeting

the needs of recent immigrants. Publications include monographs addressing the relevant cultural

issues for the top ten countries of origin of foreign- born people in the U.S. The monographs are

based on a model of the service provider as a “culture broker,” with the first monograph in the series

addressing the theory of culture brokering and its relevance to rehabilitation practice. A workshop

on this topic is also available.
6-12 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

New York

National Resource Center on Supported Living and Choice for People

with Mental Retardation and Developmental Disabilities

Syracuse University

Center on Human Policy

805 South Crouse Avenue, Room 101

Syracuse, NY 13244-2280

thechp@sued.syr.edu

http://soeweb.syr.edu/thechp

Principal Investigator: Steven J. Taylor, PhD, 315/443-3851

Public Contact: Bonnie Shoultz, Associate Director; Rachael A. Zubal-Ruggieri, Information

Coordinator, 800/894-0826 (V); 315/443-3851 (V); 315/443-4355 (TTY); Fax: 315/443-

4338

Project Number: H133A990001

Start Date: January 1, 1999

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 99 $400,000; FY 00 $400,000; FY 01 $400,000; FY 02 $400,000

Abstract: This project conducts information dissemination, training, and technical assistance on

community inclusion, with a specific focus on supported living and choice. The Center identifies

and documents innovative policies and practices for home ownership, self-directed support services,

self-determination, self-advocacy, and community participation. Activities include the preparation of

information materials for direct support staff, a national survey of state funding for supported living,

and increased efforts to address the needs of historically underrepresented groups. The project

maintains an information clearinghouse on supported living and choice and disseminates resource

material targeted to people with developmental disabilities, family members, professionals, direct

services staff, policy-makers, and providers. It offers assistance and support to Self Advocates

Becoming Empowered, state and local providers, developmental disability councils, and protection

and advocacy agencies.
Knowledge Dissemination and Utilization 6-13

Disability and Rehabilitation Research Projects

Texas

National Center for the Dissemination of Disability Research (NCDDR)

Southwest Educational Development Laboratory

211 East Seventh Street, Suite 400

Austin, TX 78701-3281

lharris@sedl.org

http://www.ncddr.org

Principal Investigator: John Westbrook, PhD

Public Contact: Lin Harris, Information Assistant, 800/266-1832 (V/TTY); Fax: 512/476-2286

Project Number: H133A990008

Start Date: September 30, 1999

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 99 $750,000; FY 00 $750,000; FY 01 $750,000; FY 02 $750,000

Abstract: The goal of the National Center for the Dissemination of Disability Research (NCDDR)

is to promote the utilization of research results developed through NIDRR grants/contracts. Major

areas of work of the NCDDR include: (1) Research–designed to collect information that assists in

identifying the needs and most likely strategies that assist in matching dissemination practices with

intended user audiences. Activities include conducting annual surveys, focus groups, surveys, and

annual reporting of state-of-the-art information about NIDRR grantees’ dissemination successes. (2)

Demonstration–conducted to determine the effectiveness of new strategies and approaches in

achieving intended dissemination and utilization outcomes. Activities include developing and using

innovative web-based mechanisms, increasing common portal access to substantive English and

Spanish language resources of grantees, and developing outreach strategies for under-represented

audiences. (3) Dissemination and Utilization–implemented not to support the simple distribution of

materials and other resources but rather the use of research outcomes in meaningful ways by those

that can most benefit from their use. Activities include production of print and web-based informational products, networking of grantees to maximize outreach impact, and developing networks with

a variety of research stakeholder groups for information and strategy exchanges. (4) Technical

Assistance–provided to NIDRR grantees to build understanding, skills, and resources related to the

dissemination and utilization of their disability research outcomes. Activities include providing

onsite and offsite assistance in planning effective dissemination efforts, providing direct assistance

to grantees with targeted dissemination efforts, and assisting in designing evaluation strategies to

measure dissemination and utilization outcomes.
6-14 Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects

Texas

Model Spinal Cord Injury Systems Dissemination Center

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund

Houston, TX 77030-3405

khart@bcm.tmc.edu

http://www.mscisdisseminationcenter.org

Principal Investigator: Karen A. Hart, PhD

Public Contact: 713/797-5946; Fax: 713/797-5982

Project Number: H133A011501

Start Date: September 1, 2001

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $150,000; FY 02 $150,000

Abstract: The Model Spinal Cord Injury Systems (MSCIS) Dissemination Center is a collaborative

effort between the NIDRR-funded Model Spinal Cord Injury Centers and SCI collaborative research

projects. The Center provides information about MSCIS research and publications to inquirers and

model system staff members via the Internet, the telephone, and surface mail. Overall objectives of

the project are: (1) documenting the scientific productivity of the Model SCI Centers and Collaborative Research Projects and providing a history of the Model Centers’ publications; (2) verifying that

the publications are peer-reviewed by downloading citations from Medline, Current Contents,

Cumulative Index to Nursing and Allied Health Literature (CINAHL) and Psychology Literature

(PsychLit); (3) ensuring the accuracy of the citations through verification by Center and author

semi-annually; (4) maintaining, on a semi-annual basis, the listing of web-accessible citations hosted

on web site of the Regional Spinal Cord Injury Center of the Delaware Valley at Thomas Jefferson

University Hospital in Philadelphia; (5) documenting and verifying the accuracy and currency of

published book chapters and textbooks; (6) storing information electronically in Reference Manager

in a format that can be uploaded to Reference Web Poster on the Center’s web site; (7) gathering

structured data from each of the Model SCI Centers and Collaborative Research Projects that describes the educational products produced and the presentations given, as evidence of the significant

work being done; (8) classifying the educational products and presentations produced by the Model

SCI Centers and Collaborative Research Projects to provide a variety of accurate retrieval options

for interested constituents; (9) developing a data storage system that facilitates uploads into the

program’s web site in accessible format for interested constituents such as individuals with SCI,

organizations, NIDRR, NCDRR, NARIC, the Model SCI Centers, libraries, rehabilitation facilities,

professionals, and students; (10) disseminating efficiently and effectively to the greatest number of

constituents the publications, educational products, and presentations produced by the Model SCI

Centers and the Collaborative Research Projects as an aggregate representation of this NIDRR

program’s contribution to the field of SCI; (11) providing a mechanism for NCDRR and NARIC to

verify that they have complete and accurate information about all the Model SCI Centers and their

accomplishments so that NCDDR and NARIC can achieve their dissemination objectives; and (12)

reaching the greatest number of individuals possible with information and education about SCI by

efficient use of NIDRR-funded resources and personnel.
Knowledge Dissemination and Utilization 6-15

Field-Initiated Projects (FIPs) Field-Initiated Projects (FIPs)

Colorado

Disability Law Knowledge Management System: A One-Stop

Clearinghouse for Disability Information

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

info@mtc-inc.com

Principal Investigator: Robert H. Gattis Jr., 719/578-8448

Public Contact: 719/444-0252; Fax: 719/444-0269

Project Number: H133G000221

Start Date: June 1, 2000

Length: 36 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 00 $149,998; FY 01 $149,977; FY 02 $149,926

Abstract: The Disability Law Knowledge Management System (KMS) project develops a comprehensive knowledge dissemination and utilization repository of disability civil rights information in a

web-based helpdesk format. The system builds on research conducted for the Rocky Mountain

Disability and Business Technical Assistance Center (DBTAC) project, in which a prototype knowledge management system was developed and tested with information specialists from NIDRRfunded DBTACs. The prototype included a portion of the material available on the American with

Disabilities Act. The Disability KMS project expands on the earlier work in two important areas. It

vastly increases the quantity of information in the knowledge base, and it makes the work of information specialists more available to the general public. The project includes a comprehensive evaluation of the resulting system.
6-16 Knowledge Dissemination and Utilization

Field-Initiated Projects (FIPs)

North Carolina

Exploring Universal Design: Developing and Disseminating Universal

Design Education Material Online

North Carolina State University

Center for Universal Design

104 Brooks Hall, 50 Pullen Road

Campus Box 8613

Raleigh, NC 27695-8613

molly_story@ncsu.edu

http://www.udeducation.org

Principal Investigator: Molly Story

Public Contact: 707/578-6839 (V/TTY); Fax: 707/578-9435

Project Number: H133G000025

Start Date: October 1, 2000

Length: 36 months

NIDRR Officer:oj: William Peterson

NIDRR Funding: FY 00 $149,967; FY 01 $149,721; FY 02 $149,789

Abstract: This project develops an interactive web site of universal design instructional materials,

project ideas, visuals, teaching strategies, and resources for use by design faculty, students, practicing designers, and user-experts. These growing audiences require sophisticated instructional materials, available through an efficient and timely vehicle for communication and dissemination. Objectives include: (1) allowing flexibility and discussion in how projects, visuals, and instructional

materials are used in design education; (2) building an infusion model of teaching rather than a

prescriptive, singular curriculum approach; and (3) promoting the site internationally to design

faculty, practitioners, and others interested in universal design education. Partners in the project are

the Center for Universal Design at North Carolina State University, the IDEA Center/Center for

Virtual Architecture at the State University of New York at Buffalo, and Elaine Ostroff of the Global

Universal Design Educators Network.
Knowledge Dissemination and Utilization 6-17

ADA Technical Assistance Projects ADA Technical Assistance Projects

Washington

National Center on Accessible Information Technology in Education

University of Washington

Center on Human Development and Disability

Box 357920

Seattle, WA 98195-7920

accessit@u.washington.edu

http://www.washington.edu/accessit

Principal Investigator: Kurt Johnson, PhD, 206/543-3677

Public Contact: Alan J. Knue, 866/968-2223 (V/TTY); 206/616-2223 (V); 866/866- 0162 (TTY);

Fax: 206/543-4779

Project Number: H133D010306

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $700,000; FY 02 $700,000

Abstract: This program helps educational entities make IT accessible to all students and employees,

including those with disabilities. The Center: (1) compiles, redesigns, and develops materials that

assist educational entities and their constituents in understanding and fulfilling their legal obligations

to provide accessible IT, including an ADA self-evaluation guide for schools, Section 504 and ADA

guidance for educational entities, technical materials on IT access, a consumer’s guide to accessible

IT, and technical IT standards; (2) conducts a national information dissemination campaign using

multiple formats and venues that raise awareness of accessible education-based IT and inform target

audiences about the availability of technical assistance from the Disability Business Technical

Assistance Centers (DBTACs) and others; (3) develops, disseminates, and provides technical assistance with implementation of policies, procedures, and practices that promote the use and procurement by educational entities of accessible IT that meets the standards for Section 508 or follows

universal design principles; (4) coordinates with and provides training, materials, and technical

assistance to the DBTACs in support of their technical assistance efforts to educational entities on

accessible IT; and (5) provides training, materials, and technical assistance to staff of the U.S.

Department of Education’s various IT initiatives and coordinates efforts with relevant Federal

agencies and programs in order to assure that strategies for achieving accessible IT are used and

promoted in every facet of activities and programs carried on by these organizations. The Center is a

collaboration of the Center for Technology and Disability Studies, Opportunities, Internetworking,

and Technology project (DO-IT), in partnership with the Equal Access to Software and Information

(EASI) and the Microsoft Corporation. The Center works with the NIDRR-funded National Center

on the Study of Postsecondary Education Supports and the National Center on Secondary Education

and Transition in its dissemination efforts.
6-18 Knowledge Dissemination and Utilization

Assistive Technology Technical Assistance Projects Assistive Technology Technical Assistance Projects

Georgia

assitivetech.net - Internet Site on Assistive Technology

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street

Atlanta, GA 30318

beth.bryant@arch.gatech.edu

http://www.assistivetech.net

Principal Investigator: Elizabeth A. Bryant, 404/894-0254

Public Contact: Robert Todd, Project Director, 404/894-6895; 800/726-9119 (V/TTY); Fax: 404/

894-9320

Project Number: H224B020002

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 02 $250,000

Abstract: The National Assistive Technology Internet Site (www.assistivetech.net) increases the

availability of, and ease of access to, information about assistive technology (AT), services, and

resources available for people with disabilities. The web site provides 24-hour access to AT information for those with Internet connectivity, and a toll-free telephone number for those without it. The

site serves all people but focuses particularly on people with disabilities, their families, service

providers, educators, and employers. The assistivetech.net web site features: access to information

about more than 15,500 AT devices, innovative automated intelligent agents to assist with AT definition and selection, Vendor Data Entry Interface to enable vendor involvement in maintaining AT

information, and over 1,000 electronic links to appropriate and accessible public and private resources and information related to all types of disabilities, including low-level reading skills. Enhancements to the site include: Natural Language Search interface to enhance site usability, a forum

for user-submitted accommodations and strategies, and improved, easier-to-use access to AT product

information.
Knowledge Dissemination and Utilization 6-19

Assistive Technology Technical Assistance Projects

New York

National Assistive Technology Advocacy Project

Neighborhood Legal Services, Inc.

Disability Law Unit

Ellicott Square Building

295 Main Street, Room 495

Buffalo, NY 14203

atproject@nls.org

http://www.nls.org

Principal Investigator: James R. Sheldon Jr., Esq.

Public Contact: 716/847-0650; Fax: 716/847-0227

Project Number: H224B020004

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 02 $160,000

Abstract: This project provides management- and advocacy-related technical assistance to attorneys

and advocates who work for the 56 Protection and Advocacy for Assistive Technology (P&AAT)

projects, as well other public entities with an interest in the funding of AT. Advocacy-related training is provided through an annual project conference; sessions at the annual National Association of

Protection and Advocacy Systems (NAPAS) conference; sessions at statewide or regional conferences sponsored by protection and advocacy programs or State AT Act projects; and distance training events on special education, funding of work-related AT, and other topics to be determined.

Management-related training is provided at four annual training events sponsored by NAPAS. The

project prepares publications on the funding of AT through a variety of funding sources and acts as a

clearinghouse for funding-related documents through in- house resource libraries containing administrative hearing decisions; a wide range of court-related documents, including briefs and complaints; and model policies, procedures, and practices for delivery of AT in special education systems. A national AT email list provides a low-cost, efficient way to communicate with a nationwide

network of AT advocates. The project also maintains a web site containing information relative to

the funding of AT, including many of the project’s publications and links to other web-based resources to support AT advocacy efforts.
6-20 Knowledge Dissemination and Utilization

NIDRR Contracts NIDRR Contracts

Maryland

National Rehabilitation Information Center (NARIC)

HeiTech Services, Inc.

4200 Forbes Boulevard, Suite 202

Lanham, MD 20706

dwendling@heitechservices.com

http://www.naric.com

Principal Investigator: Mark X. Odum

Public Contact: Information Specialists, 800/346-2742 (V); 301/459-5900 (V); 301/459-4263 (Fax/

TTY); Fax: 301/459-4263

Project Number: ED-02-CO-002

Start Date: January 1, 2002

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $740,000

Abstract: The National Rehabilitation Information Center (NARIC) maintains a research library of

more than 60,000 documents and responds to a wide range of information requests, providing facts

and referral, database searches, and document delivery. Through telephone information referral and

the Internet, NARIC disseminates information gathered from NIDRR-funded projects, other federal

programs, and from journals, periodicals, newsletters, films, and videotapes. NARIC maintains

REHABDATA, a bibliographic database on rehabilitation and disability issues, both in-house and on

the Internet. Users are served by telephone, mail, electronic communications, or in person. NARIC

also prepares and publishes the annual NIDRR Program Directory, available in database format from

NARIC’s web site.
Knowledge Dissemination and Utilization 6-21

NIDRR Contracts

Maryland

ABLEDATA Database Program

ORC Macro

8630 Fenton Street, Suite 930

Silver Spring, MD 20910

abledata@macroint.com

http://www.abledata.com

Principal Investigator: Katherine Belknap, 301/608-8998, ext. 100

Public Contact: Katherine Belknap, 800/227-0216 (V); 301/608-8998 (V); 301/608- 8912 (TTY);

Fax: 301/608-8958

Project Number: ED-02-000128

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $516,829

Abstract: This project maintains and expands the ABLEDATA database, develops information and

referral services that are responsive to the special technology product needs of consumers and

professionals, and provides the data to major dissemination points to ensure wide distribution and

availability of the information to all who need it. The ABLEDATA database contains information on

more than 26,000 commercially produced and custom-made assistive devices. Requests for information are answered via telephone, mail, electronic communications, or in person.
ADA Technical Assistance Programs

The Americans with Disabilities Act (ADA) opens more opportunities for persons

with disabilities. It also places certain responsibilities on employers, transit and

communication systems, state and local governments, and public accommodations. To

assist covered parties to understand and comply with the ADA, NIDRR has funded a

network of grantees to provide information, training, and technical assistance to

businesses and agencies with duties and responsibilities under the ADA.

Contents

ADA Technical Assistance Projects ..................................................................................................... 3

ADA Technical Assistance Projects 7-3

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region I - CT, ME, MA, NH, RI, and VT

New England ADA Center and Universal Design in Educational IT

(Disability and Business Technical Assistance Center - Region I)

Adaptive Environments Center, Inc.

374 Congress Street, Suite 301

Boston, MA 02210-1807

oharrison@adaptiveenvironments.org; vfletcher@adaptiveenvironments.org

http://www.adaptiveenvironments.org

Principal Investigator: Valerie Fletcher, 617/695-1225, ext. 26

Public Contact: Oce Harrison, EdD, Project Director, 800/949-4232 (V/TTY in CT, ME, MA, NH,

RI, and VT); 617/695-1225, ext. 31 (V/TTY); Fax: 617/482-8099

Project Number: H133D010211

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 01 $850,000; FY 02 $850,000

Abstract: The New England DBTAC provides technical assistance, training, and information

dissemination for Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont.

The new grantee retains relationships with previously contracted state affiliates, the statewide coalitions, the annual incentive grants, and the newsletter. Groups with rights or responsibilities under the

ADA that are targeted for expanded outreach include self-advocacy organizations and the ARC;

libraries; human resources trade groups; the hospitality industry, including Visitor and Convention

Bureaus; schools; and health care professionals. Annual regional training initiatives include day-long

workshops for state, municipal, and county ADA coordinators; half-day trainings for centers for

independent living; training for architects on ADA updates; outreach and training in minority and

immigrant communities both to people with disabilities and business owners; and voter accessibility

training. Implementation of the education-based IT component of the project includes: (1) establishing regional linkages to educational entities for cooperation/collaboration; (2) establishing the

capacity in each state to coordinate and build skill, using resources of state organizations and the

state infrastructure to reach large audiences through familiar, local methods; (3) training using a

variety of distance learning techniques tailored to target audiences; (4) convening a collaborative

conference on universal design on the web with the Rhode Island School of Design; (5) running a

public awareness campaign that puts the issue of universal design on the educational IT agenda; and

(6) identifying best practices in the region to be written up as case studies each year.
7-4 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region II - NJ, NY, PR, and VI

Northeast Disability and Business Technical Assistance Center -

Region II

Cornell University

Program on Employment and Disability

School of Industrial and Labor Relations

107 ILR Extension Building

Ithaca, NY 14853-3901

northeastada@cornell.edu

http://www.northeastada.org

Principal Investigator: Susanne Bruyère, PhD, 607/255-7727

Public Contact: Andrea Haenlin-Mott, Project Director, 800/949-4232 (V/TTY, in NJ, NY, PR, and

VI); 607/255-8348 (V); 607/255-6686 (TTY); Fax: 607/255-2763

Project Number: H133D010205

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $1,100,000; FY 02 $1,100,000

Abstract: The Northeast ADA & Accessible Information Technology Center provides technical

assistance, training, and information dissemination for New Jersey, New York, Puerto Rico, and the

Virgin Islands on the ADA and accessible information technology. A new focus for the project is

information, training, and technical assistance to educational entities in Region II, on the procurement and use of accessible information technology for students and employees with disabilities.

Services are comprehensive, involving effective use of existing networks and collaborations with

regional partners and organizations that currently deliver services to educational organizations,

parent organizations, disability advocacy organizations, employers, labor unions, and state and local

government. The Program on Employment and Disability at Cornell University’s School of Industrial and Labor Relations takes the lead in a regional collaborative effort that includes the following

partners: Office of the Advocate for Persons with Disabilities for New York state; AccessPoint

Solutions in New Jersey; the Department of Architecture and Center for Assistive Technology at the

State University of New York (SUNY) at Buffalo; the Assistive Technology Project at the University of Puerto Rico; the University Affiliated Program at the University of the Virgin Islands; and

various local agencies and organizations.
ADA Technical Assistance Projects 7-5

ADA Technical Assistance Projects

Region III - DC, DE, MD, PA, VA, and WV

Mid-Atlantic Disability Business Technical Assistance Center -

Region III

TransCen, Inc.

451 Hungerford Drive, Suite 607

Rockville, MD 20850-4151

adainfo@transcen.org

http://www.adainfo.org

Principal Investigator: Marian S. Vessels, Project Director

Public Contact: 800/949-4232 (V/TTY, in DC, DE, MD, PA, VA, and WV); 301/217- 0124 (V/

TTY); Fax: 301/217-0754

Project Number: H133D010212

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 01 $1,099,998; FY 02 $1,099,998

Abstract: The Mid-Atlantic DBTAC provides technical assistance, training, and information dissemination for Delaware, the District of Columbia, Maryland, Pennsylvania, Virginia, and West

Virginia. Activities are organized under two major goals: (1) provide technical assistance, training,

and information dissemination about the ADA; and (2) provide technical assistance, training, and

information dissemination about accessible education-based IT. Individual activities to meet these

goals and project objectives are designed to build capacity among State and local agencies, including

Centers for Independent Living, so that the Center’s impact and effectiveness is maximized. Approximately 20,000 individuals and organizations are directly impacted through project activities

each year.
7-6 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region IV - AL, FL, GA, KY, MS, NC, SC, and TN

Southeast Disability Business Technical Assistance Center - Region IV

Georgia Tech Research Corporation

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street

Atlanta, GA 30318

sedbtac@catea.org

http://www.sedbtac.org

Principal Investigator: Shelley Kaplan, Project Director, 404/385-0636

Public Contact: 800/949-4232 (V/TTY, in AL, FL, GA, KY, MS, NC, SC, and TN); 404/385-0636

(V/TTY); Fax: 404/385-0641

Project Number: H133D010207

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $1,450,000; FY 02 $1,450,000

Abstract: The Southeast DBTAC provides technical assistance, training, and information dissemination for Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, and

Tennessee. The project: (1) provides expert technical assistance to promote voluntary and effective

implementation of the ADA among entities with rights and responsibilities; (2) facilitates widespread use, particularly in educational entities, of accessible and usable electronic and IT; (3) fosters

and facilitates regional capacity-building by cultivating collaborations between the regional Educational Leadership Team and the existing ADA Leadership Network; (4) expands training programs

by incorporating enhanced distance learning methods, including teleconferences, web-based training, and electronic discussions, that are designed in a fully accessible and useful manner; and (5)

identifies and disseminates “Best Practices” in employment and IT in order to encourage and support replication. To build on its ten-year history of regional capacity building, the DBTAC: (a)

strengthens its ADA Leadership Network of eight state and 80 local affiliates; (b) shares expertise

about IT through the Georgia Tech Center for Assistive Technology and Environmental Access

(CATEA)’s Information Technology Technical Assistance and Training Center (ITTATC) project;

and (c) facilitates accessible education-based IT across the educational spectrum via the newlyestablished Educational Leadership Team.
ADA Technical Assistance Projects 7-7

ADA Technical Assistance Projects

Region V - IL, IN, MI, MN, OH, and WI

Great Lakes Disability Business Technical Assistance Center -

Region V

University of Illinois/Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Room 405

Chicago, IL 60608-6904

gldbtac@uic.edu

http://www.adagreatlakes.org

Principal Investigator: Robin A. Jones, Project Director, 312/996-1059

Public Contact: 800/949-4232 (V/TTY, in IL, IN, MI, MN, OH, and WI); 312/413- 1407 (V/TTY);

Fax: 312/413-1856

Project Number: H133D010203

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $1,450,000; FY 02 $1,478,750

Abstract: The Great Lakes DBTAC provides technical assistance, training, and information dissemination for Illinois, Indiana, Michigan, Minnesota, Ohio, and Wisconsin. The project’s audiences

include business, government, and education organizations and individuals with disabilities and their

families. The Center assists these audiences in understanding their rights and responsibilities under

the ADA. For example, technical assistance and training are provided to educational entities regarding their responsibility to ensure that the IT they purchase and use is accessible to and usable by

individuals with disabilities. The aim is that within the education system administrators, educators,

staff, students, and parents have full and equal access to programs, services, and information used or

disseminated through a variety of information technologies. The Center programs and services are

coordinated through a network of collaborators at the local, state, and regional level representing

business, government, education entities and people with disabilities. Services and programs include

direct technical assistance, training, and materials dissemination utilizing a variety of methods and

strategies.
7-8 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region VI - AR, LA, NM, OK, and TX

Disability Law Resource Project (Southwest Disability Business

Technical Assistance Center - Region VI)

The Institute for Rehabilitation and Research (TIRR)

Independent Living Research Utilization (ILRU)

2323 South Shepherd Boulevard, Suite 1000

Houston, TX 77019-7024

dlrp@ilru.org

http://www.dlrp.org

Principal Investigator: Lex Frieden, 713/797-5283

Public Contact: Wendy Wilkinson, Project Director, 800/949-4232 (V/TTY, in AR, LA, NM, OK,

and TX); 713/520-0232 (V); 713/520-5136 (TTY); Fax: 713/520-5785

Project Number: H133D010210

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 01 $1,099,997; FY 02 $1,099,997

Abstract: The Disability Law Resource Project (DLRP), based at ILRU, is one of ten regional

Disability and Business Technical Assistance Centers that offers expert technical assistance, training,

and material dissemination to Arkansas, Louisiana, New Mexico, Oklahoma, and Texas. Information

and training is provided on the ADA, information technology, and other disability related laws.

DLRP proactively informs and educates a diverse audience that includes educational, business, and

governmental entities. The DLRP collaborates with an affiliate in each of the five states, as well as,

disability organizations to expand its outreach throughout the region.
ADA Technical Assistance Projects 7-9

ADA Technical Assistance Projects

Region VII - IA, KS, MO, and NE

Great Plains ADA and Information Technology Center - Region VII

University of Missouri/Columbia

100 Corporate Lake Drive

Columbia, MO 65203

ada@missouri.edu

http://www.adaproject.org

Principal Investigator: Jim de Jong, Project Director, 573/882-3600 (V)

Public Contact: 800/949-4232 (V/TTY, in IA, KS, MO, and NE); 573/882-3600 (V/TTY); Fax:

573/884-4925

Project Number: H133D010201

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 01 $850,000; FY 02 $850,000

Abstract: The Great Plains DBTAC provides technical assistance, training, and information dissemination for Iowa, Kansas, Missouri, and Nebraska. In order to facilitate successful implementation of the ADA and accessible education-based IT in Region VII, the project and its collaborating

partners: (1) provide training and technical assistance, and disseminate materials to individuals and

entities with responsibilities and rights under the ADA regarding the ADA’s requirements as well as

developments in case law, policy, and implementation; (2) increase the capacity of organizations at

the state and local level, including Centers for Independent Living (CILs), to provide training on the

ADA; (3) provide training and technical assistance, and disseminate material on the legal obligations

of educational entities to provide accessible IT to students and employees; (4) provide information

to CILs, Parent Training Information Centers, and Regional Resource Centers on accessible education- based IT; (5) increase the capacity of organizations at the state and local level, including CILs,

to provide technical assistance; (6) provide technical assistance to educational entities to enable

them to conduct self-evaluations on the accessibility of their IT; and (7) provide technical assistance,

either directly or through referral, regarding how to make existing IT accessible and ensure that new

IT acquisitions are accessible.
7-10 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region VIII - CO, MT, ND, SD, UT, and WY

Rocky Mountain Disability Business Technical Assistance Center -

Region VIII

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

RegionVIII@mtc-inc.com

http://www.ada-infonet.org

Principal Investigator: Robert Gattis, Project Director, 719/444-0252

Public Contact: 800/949-4232 (V/TTY, in CO, MT, ND, SD, UT, and WY); 719/444- 0268 (V/

TTY); Fax: 719/444-0269

Project Number: H133D010004

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 01 $849,716; FY 02 $849,157

Abstract: The Rocky Mountain DBTAC provides technical assistance, training, and information

dissemination for Colorado, Montana, North Dakota, South Dakota, Utah, and Wyoming. The

project builds the capacity for reaching every individual, business, public entity, and educational

institution with training, materials dissemination, and technical assistance on the ADA and educational-based IT accessibility. A comprehensive program expands a collaborative network consisting

of key agencies and organizations throughout the region. This project also operates and maintains

the ADA Impact Measurement System (AIMS), a web-based system that collects customer survey

data. This system allows the ten regional DBTACs to evaluate the outcomes of the DBTAC program

quantitatively.
ADA Technical Assistance Projects 7-11

ADA Technical Assistance Projects

Region IX - AZ, CA, HI, NV, and the Pacific Basin

Pacific Disability Business Technical Assistance Center - Region IX

Public Health Institute

2168 Shattuck Avenue, Suite 301

Berkeley, CA 94704-1307

adatech@pdbtac.com

http://www.pacdbtac.org

Principal Investigator: Erica C. Jones, Project Director, 510/848-2980 (V); 510/848-1840 (TTY)

Public Contact: Gina Obrecht, Program Coordinator, 800/949-4232 (V/TTY, in AZ, CA, HI, NV,

and the Pacific Basin); 510/848-2980 (V); 510/848-1840 (TTY); Fax: 510/848- 1981

Project Number: H133D010209

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $1,450,000; FY 02 $1,450,000

Abstract: The Pacific DBTAC provides technical assistance, training, and information dissemination for Arizona, California, Hawaii, Nevada, and the Pacific Basin. The latest funding cycle includes a series of innovative initiatives and approaches to enhance compliance with ADA rules and

regulations. There is also an integrated action plan to enhance the availability of accessible IT

equipment in Federal Region IX, primarily through a focus on educational institutions as key sites

for adopting the principles of Section 508, and for ensuring full access to IT for young people with

disabilities. The Pacific DBTAC’s interdisciplinary, multilevel management strategy ensures that all

project objectives are tracked and attained and that Center services are fully integrated and delivered

in an effective, cost- efficient, and accessible manner. The DBTAC provides quality training, federally approved materials, and technical assistance services to requesters who seek support, advice,

and information and it conducts proactive strategic outreach and education services that promote

adherence to ADA regulations and principles at all levels of society. Education-Based Information

Technology, being a key focus, uses best practices to promote utilization throughout school systems.
7-12 ADA Technical Assistance Projects

ADA Technical Assistance Projects

Region X - AK, ID, OR, and WA

Northwest ADA/IT Center (Disability Business Technical Assistance

Center - Region X)

Oregon Health and Science University

Oregon Institute on Disability and Development

P.O. Box 574

Portland, OR 97207-0574

nwada@ohsu.edu

http://www.nwada.org

Principal Investigator: Charles Drum, JD, PhD, 503/494-8047

Public Contact: Lynnae Ruttledge, Project Director, 800/949-4232 (AK, ID, OR, and WA only);

503/494-6747; Fax: 503/494-6868

Project Number: H133D010002

Start Date: October 1, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $850,000; FY 02 $850,000

Abstract: The Northwest DBTAC/Information Technology Center provides technical assistance,

training, and information dissemination for Alaska, Idaho, Oregon, and Washington. Audiences

include people with disabilities, state and local governments, and businesses in Region X. In addition to the Americans with Disabilities Act (ADA) and other state and federal disability laws and

regulations, the Center also provides technical assistance, training, and dissemination to educational

entities regarding “best practices” information on accessible IT. The sources of such information

include the new National Center on Accessible Education-Based Information Technology.
ADA Technical Assistance Projects 7-13

ADA Technical Assistance Projects

Virginia

National ADA Program Assistance Coordinator

CESSI

6858 Old Dominion Drive, Suite 250

McLean, VA 22101

adata@adata.org

http://www.adata.org

Principal Investigator: Shelia Newman

Public Contact: Jennifer Eckel, Project Director, 703/448-6155 (V); 703/448-3079 (TTY); Fax:

703/442-9015

Project Number: ED-99-CO-0002-03

Start Date: November 6, 2002

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 02 $320,000

Abstract: The role of the ADA Program Assistance Coordinator (PAC) is to enhance the performance of the organizations that are members of NIDRR’s nationwide ADA Technical Assistance

grant program. These include ten regional Disability and Business Technical Assistance Centers

(DBTACs), and Cornell University School of Industrial and Labor Relations’ Research and Demonstration Project (R&D) for improving employment practices covered by Title I of the ADA. The

Program Assistance Coordinator conducts: (1) coordination services, (2) collaborative assistance, (3)

public relations, and (4) reporting activities. In addition, the PAC organizes and manages the semiannual Project Directors’ meetings. It facilitates legal review of grantee generated materials. The

PAC identifies and distributes appropriate materials from federal agencies, related NIDRR research

projects, and private and public sector organizations. As a gateway to the national ADA technical

assistance grant program, the PAC maintains a national web site, develops and disseminates promotional materials, and implements a national visibility campaign for the grantees.
Capacity-Building for Rehabilitation Research and Training

NIDRR funding for capacity building supports advanced instruction for researchers

and service providers, and training for consumers in applications of new research

and technology. This involves training researchers across disciplines, training

rehabilitation practitioners and service providers to use research-generated

knowledge and new techniques, and training consumers to participate in research

efforts. Distinguished and Merit Fellowships are provided for a one-year period of

intense research.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Fellowships (Distinguished) .................................................................................................................. 4

Fellowships (Merit) ............................................................................................................................. 12

Advanced Rehabilitation Research Training Projects.......................................................................... 14

NIDRR Contracts ............................................................................................................................... 32

Capacity Building for Rehabilitation Research Training 8-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

UIC National Research and Training Center on Psychiatric Disability

University of Illinois/Chicago

Department of Psychiatry

104 South Michigan Avenue, Suite 900

Chicago, IL 60603-5902

http://www.psych.uic.edu/uicnrtc

Principal Investigator: Judith A. Cook, PhD, 312/422-8180, ext. 19

Public Contact: Jessica A. Jonikas, 312/422-8180, ext. 18 (V); 312/422-0706 (TTY); Fax: 312/

422-0740

Project Number: H133B000700

Start Date: September 30, 2000

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $450,000; FY 01 $450,000; FY 02 $450,000

Other funding: FY 00 $300,000 (CMHS);FY 01 $300,000 (CMHS); FY 02 $300,000 (CMHS)

Abstract: This Center conducts a comprehensive series of research and training projects that focus

on increasing self-determination for persons with psychiatric disabilities. The Center’s current

projects are composed of five core areas: (1) choices in treatment decision-making; (2) economic

self-sufficiency; (3) consumer advocacy under managed care; (4) career development through real

jobs for real wages; and (5) strengthening self-determination skills and self-advocacy. These core

areas reaffirm that people with psychiatric disabilities have the right to maximal independence,

which grows out of making choices in the decisions that affect their lives. Project activities are

implemented by multidisciplinary workgroups composed of consumers, families, service providers,

state agency administrators, researchers, and Center staff. Outcome and measurement tools developed for each core area assess key outcomes and program policies related to self-determination. The

project includes a collaboratively planned state-of-the-science conference and workshop series on

self- determination and psychiatric disabilities and a comprehensive report on self- determination in

this area. Advanced technology is incorporated into each project’s objectives and Center training

and dissemination activities. Multimedia formats ensure widespread accessibility of the Center’s

products and materials to multiple constituents. Additionally, the Center conducts evaluation and

basic research; trains consumers, families, and rehabilitation, education, and mental health service

providers. The staff also develops and provides information for public policy initiatives.
8-4 Capacity Building for Rehabilitation Research Training

Fellowships (Distinguished) Fellowships (Distinguished)

Arkansas

An Analysis of ADA Title Protections After the Sutton Decisions

Kay Schriner, PhD

School of Social Work

105 Main Street

University of Arkansas

Fayetteville, AR 72701

kays@mail.uark.edu

Principal Investigator: Kay Schriner, PhD

Public Contact: 479/575-6417; Fax: 479/575-5138

Project Number: H133F020010

Start Date: September 1, 2002

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $55,000

Abstract: This project investigates what is coverable under the ADA after the Sutton rulings.

Objectives include understanding factors predicting pro-plaintiff outcomes after the Sutton decisions

and how the courts are applying the Sutton precedents in determining whether or not an individual

has a disability. The Sutton rulings, which were issued in 1999 by the Supreme Court, stand for the

proposition that the determination of an individual’s disability status must take into account the

individual’s use of mitigating measures such as medication. The rulings created additional precedent

for a narrowing of the ADA’s effectiveness, and prompted the EEOC to revise its guidelines regarding the ADA’s disability definitions. Noting that the Court’s holdings are contrary to Congress’s

intent, the revised EEOC guidelines conclude that the Sutton rulings mean that “[a] person who

experiences no substantial limitation in any major life activity when using a mitigating measure does

not meet the ADA’s first definition of disability.”
Capacity Building for Rehabilitation Research Training 8-5

Fellowships (Distinguished)

Indiana

The Effects of Inclusive and Traditional Educational Programs for

Students with Disabilities on Postsecondary Outcomes

Teresa Grossi, PhD

Indiana Institute on Disability and Community

Indiana’s University Center for Excellence

Indiana University

2853 East Tenth Street

Bloomington, IN 47408-0269

tgrossi@indiana.edu

http://www.iibc.indiana.edu

Principal Investigator: Teresa Grossi, PhD

Public Contact: 812/855-6508; Fax: 812/855-9630

Project Number: H133F020013

Start Date: September 1, 2002

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $55,000

Abstract: This project investigates the relationship between educational practices and postsecondary

outcomes for students with disabilities. Objectives include: (1) determining if students who spend

most or all of their educational experiences in inclusive settings, while having access to the general

education curriculum, achieve better postsecondary outcomes; (2) structuring an evaluation instrument to assess the comprehensive nature of transition services, using a modified Taxonomy for

Transition Programming (Kohler, 1996) instrument; and (3) in regard to the legislative mandate

from both IDEA and the Rehabilitation Act, to provide interagency collaboration and share the

transition responsibility, collecting ongoing follow-up data to obtain outcome data, assess service

continuity, and assess service gaps that occur after a student leaves school.
8-6 Capacity Building for Rehabilitation Research Training

Fellowships (Distinguished)

Massachusetts

Predictors of Functional Outcomes and Needs of Children and Youth

with Acquired Brain Injuries upon Discharge from Inpatient

Rehabilitation

Gary M. Bedell, PhD, OT

635 Commonwealth Avenue, Room 546

Boston, MA 02215

gbedell@bu.edu

Principal Investigator: Gary M. Bedell, PhD

Public Contact: 617/358-1357; Fax: 617/358-1355

Project Number: H133F020022

Start Date: September 1, 2002

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $55,000

Abstract: This study identifies predictors of functional outcomes and needs of children and youth

with acquired brain injuries upon their discharge from an inpatient rehabilitation program in the

northeast United States. The functional outcomes and needs under investigation include three domains of activity performance measured by the Pediatric Evaluation of Disability Inventory (selfcare, mobility, and social function), the extent of caregiver assistance provided for tasks in these

three domains, inpatient rehabilitation length of stay, and discharge disposition (whether they go

home or to a more restrictive setting). A second purpose of the study is to develop prediction models

and assess the feasibility of using these models to predict functional outcomes and needs at discharge for individual children admitted to the program.
Capacity Building for Rehabilitation Research Training 8-7

Fellowships (Distinguished)

Minnesota

The Self-Advocacy Movement: A History of the Unacknowledged Civil

Rights Movement

Mary F. Hayden, PhD

Institute on Community Integration

University of Minnesota

214 Pattee Hall

150 Pillsbury Drive SE

Minneapolis, MN 55455

hayde001@umn.edu

Principal Investigator: Mary F. Hayden, PhD

Public Contact: 612/625-6046; Fax: 612/625-6619

Project Number: H133F020012

Start Date: September 30, 2002

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $55,000

Abstract: This project examines the self-advocacy movement, which was started to enable people

with intellectual and other developmental disabilities to correct institutional discrimination, stigmatization, and harassment. Objectives include: (1) examining society’s relationship to people with

intellectual and other developmental disabilities; (2) examining past and present institutional discrimination experienced by people with disabilities, and comparing and contrasting these experiences with those of other minority groups; (3) identifying and describing the influences that led

people to become social activists; (4) describing organizational and other dynamics that influence

the movement; and (5) describing the current status of the self-advocacy movement and its future

direction. The project conducts 24 face-to-face interviews with self-advocates of color and/or known

founders or leaders of the self-advocacy movement.
8-8 Capacity Building for Rehabilitation Research Training

Fellowships (Distinguished)

Missouri

A Comprehensive Survey of the Status of Distance Education in

Rehabilitation Counseling

Jason D. Andrew, PhD

Aspen Professional Services

750 Malibu Road, 201-U

Osage Beach, MO 65065

jandrew@socket.net

Principal Investigator: Jason D. Andrew, PhD

Public Contact: 573/302-7972 (V/Fax); 573/291-0162

Project Number: H133F020004

Start Date: September 1, 2002

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $55,000

Abstract: This project examines the progress being made in meeting the Congressionally mandated

standard for “qualified” personnel among practicing rehabilitation counselors. In particular, the

project studies graduate-level rehabilitation counselor training programs, determining (1) the stateof-the-art in providing graduate-level rehabilitation counselor training, and (2) whether counselors

employed in the state/Federal program are actually engaged in such training. The target populations

for this research are all programs offering graduate level rehabilitation counseling degrees and

courses in the United States, and all students currently enrolled in such programs.
Capacity Building for Rehabilitation Research Training 8-9

Fellowships (Distinguished)

New York

Improving Outcomes for Individuals Who Are Low-Functioning Deaf

Frank G. Bowe, PhD

Hofstra University

111 Mason Hall - CRSR

124 Hofstra University

Hempstead, NY 11549

frank.bowe@hofstra.edu

Principal Investigator: Frank G. Bowe, PhD

Public Contact: 516/463-5782; Fax: 516/483-6415

Project Number: H133F020002

Start Date: July 1, 2002

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $55,000

Abstract: This project reviews reports regarding individuals who are low functioning deaf (LFD),

the labor force, and implementation of the Ticket to Work and Work Incentives Improvement Act

(TWWIA). The project also consults with experts on working with people who are LFD.

Policymakers are consulted to help prepare journal articles and conference presentations in the areas

of personnel preparation, reading instruction, transition, community-based services, and guidance

for educators and counselors to improve outcomes for this population.
8-10 Capacity Building for Rehabilitation Research Training

Fellowships (Distinguished)

Pennsylvania

Clinical Supervision Within the State-Federal Vocational

Rehabilitation Program: A Combined Qualitative and Quantitative

Analysis

James Herbert, PhD

Penn State University

314 Cedar Building

University Park, PA 16802-7000

jth4@psu.edu

Principal Investigator: James T. Herbert, PhD

Public Contact: 814/863-3421; Fax: 814/863-7750

Project Number: H133F020007

Start Date: September 1, 2002

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $55,000

Abstract: This project develops a model of effective supervision that is field-based, from counselor

and supervisor perspectives within the state-Federal vocational rehabilitation program. The research

combines qualitative and quantitative (nested design) methods to address five research objectives

that examine the nature of clinical supervision as practiced by the Pennsylvania Office of Vocational

Rehabilitation. Approximately 100 participants (80 counselors and 20 supervisors) from all of the 15

district offices complete an individual, structured interview. After finishing the interview, research

participants complete two research scales. The first, the Rehabilitation Counselor Supervision

Inventory, examines the knowledge and preparedness to conduct supervision. The second scale, the

Supervisory Working Alliance Inventory, examines two dimensions of the supervisory relationship,

rapport, and client focus. Results from this study provide a better understanding of effective and

ineffective supervision and what variables contribute to each type.
Capacity Building for Rehabilitation Research Training 8-11

Fellowships (Distinguished)

Virginia

Use of Low Vision Assistive Devices: Exploring the Decision-Making

Process of Older Adults with Visual Impairments

Al Copolillo, PhD, OTR/L

Virginia Commonwealth University

P.O. Box 9800

Richmond, VA 23298-0008

copolillo@vcu.edu

Principal Investigator: Al Copolillo, PhD,OTR/L

Public Contact: 804/828-2219; Fax: 804/828-0782

Project Number: H133F020028

Start Date: September 15, 2002

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $55,000

Abstract: This study identifies factors that predict assistive device use and guides therapeutic

services for all types of assistive devices. The broad objective is to describe the process people with

disabilities experience when deciding to initiate assistive technology use and to incorporate devices

into their lives. The specific aim is to describe the decision making of older adults with visual

impairments who are working to integrate low-vision assistive technologies into their daily routines.

Well- established qualitative research procedures are used, including focus group and narrative

interviewing, and systematic analysis of transcribed data leading to broad theme identification. Data

from medical records are used to complete profiles of device users and non-users and to verify

information provided by the subjects in interviews.
8-12 Capacity Building for Rehabilitation Research Training

Fellowships (Merit) Fellowships (Merit)

Arizona

Assistive Technology and Adult Literacy: Bridging the Gap for Adults

with Learning Disabilities

Heidi Silver-Pacuilla

Pima College Adult Education

401 North Bonita

Tucson, AZ 85709-6500

hsilverp@pima.edu

Principal Investigator: Heidi Silver-Pacuilla

Public Contact: 520/206-6500; Fax: 520/206-6510

Project Number: H133F020025

Start Date: August 1, 2002

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $45,000

Abstract: This project investigates whether assistive technology access and instruction improves the

literacy skills and goal attainment of adult students with learning disabilities, when combined with

regular adult basic education classes. A participatory action research (PAR) design seeks reflective

participant involvement at every level, incorporating personal reflection, group dialogue, negotiation

of the emerging analysis, and social action in an ongoing, long-term commitment. The overall goals

of this project are to: (1) investigate the effects of assistive technology on adult literacy learners’

skill development and goal attainment, (2) investigate the personal and social impacts that participation has on the learners, and (3) make recommendations to the field of adult education on promising

practices for the infusion of assistive technology into literacy instruction.
Capacity Building for Rehabilitation Research Training 8-13

Fellowships (Merit)

Wisconsin

Developing a Social Validation Model for Effective Utilization of

Disability and Rehabilitation Research

Pimjai Sudsawad, ScD, OTR

University of Wisconsin/Milwaukee

Department of Occupational Therapy

P.O. Box 413

Milwaukee, WI 53201-0413

pimjais@uwm.edu

Principal Investigator: Pimjai Sudsawad, ScD, OTR

Public Contact: 414/229-2630; Fax: 414/229-5100

Project Number: H133F020023

Start Date: September 1, 2002

Length: 12 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $45,000

Abstract: This project develops a preliminary social validation model that applies the concepts of

social validity, ecological validity, and clinical significance to conducting and reporting research,

with the goal of increasing research utilization among rehabilitation practitioners. The specific aims

of this project are to investigate: (1) whether the concepts of social validity, ecological validity, and

clinical significance have been incorporated into outcome studies of occupational therapy (OT),

physical therapy (PT), and speech-language pathology (SLP) treatments for children with disabilities; (2) whether incorporation of these concepts of evidence-based practice is perceived to be useful

by OT, PT, and SLP practitioners who work with children with disabilities in school settings; and (3)

whether incorporation of these concepts is perceived to have an impact on research utilization among

those practitioners.
8-14 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

California

Advanced Rehabilitation Research Program: Ed Roberts Fellowship in

Disability Studies

University of California

IURD

104 Wheeler Hall MC 1870

Berkeley, CA 94720-1870

sschweik@uclink.berkeley.edu

Principal Investigator: Susan Schweik, 510/642-4333

Project Number: H133P020009

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $150,000

Abstract: This program trains advanced scholars to be leaders in disability studies and rehabilitation

research, teaching, and mentorship. Based at the University of California, Berkeley, a San-Francisco-Bay-area-wide consortium of universities, research institutes, and disability agencies recruits

people with advanced professional degrees who want to broaden their theoretical outlook and their

disability research methodological skills. In particular, the project recruits scholars with significant

disabilities from minority groups who have not had the opportunity for collaborative cross-disciplinary research study of disability that includes social science and the humanities. The project supports

three nine-month-long Ed Roberts Postdoctoral Fellowships a year for each of the five program

years. Fellows devote their full-time effort to Fellowship activities onsite. Funding includes a stipend and travel funds.
Capacity Building for Rehabilitation Research Training 8-15

Advanced Rehabilitation Research Training Projects

Florida

Interdisciplinary Rehabilitation Research Post-Doctoral Program

University of Florida

Department of Occupational Therapy

P.O. Box 100164

Gainesville, FL 32610-0164

wmann@hp.ufl.edu

http://www.hp.ufl.edu/rehabsci/

Principal Investigator: William C. Mann, PhD

Public Contact: 352/392-2617; Fax: 352/846-1042

Project Number: H133P020005

Start Date: August 1, 2002

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 02 $150,000

Abstract: This project addresses the shortage of rehabilitation researchers through an interdisciplinary postdoctoral training program in rehabilitation research. The focus is on recruiting and training

postdoctoral fellows with backgrounds in professions of high need, specifically rehabilitation engineering, physical therapy, and occupational therapy. There is also a strong focus on recruiting

members of groups that have been traditionally underrepresented in rehabilitation research positions.

The participating faculty for this program have large funded programs of rehabilitation research and

also have considerable experience in serving as mentors for advanced research training. The program offers postdoctoral fellowships from two to three years to qualified individuals interested in

rehabilitation research. Postdoctoral fellows focus in an area related to one of the levels of these

models: neurological rehabilitation, rehabilitation engineering, and rehabilitation outcomes research.
8-16 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training Project in Rehabilitation

Services Research

Northwestern University

Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

http://www.rseu.northwestern.edu

http://www.northwestern.edu/ihsrps

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-4572

Project Number: H133P80014

Start Date: May 1, 1998

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 98 $150,000; FY 99 $150,000; FY 00 $150,000; FY 01 $150,000; FY 02

$150,000

Abstract: This project develops a five-year fellowship program in rehabilitation services research at

Northwestern University’s Institute for Health Services Research and Policy Studies and the Department of Physical Medicine and Rehabilitation. It uses available expertise and collaborators to train

postdoctoral fellows in rehabilitation health services research. Over two years the program includes

course work, a practicum, original research, and grant writing. Fellows new to health services

research have six core courses, as well as the two additional courses for all fellows. The first year

concentrates on beginning Masters in Public Health (MPH) courses. The second year includes

intermediate MPH course work plus electives. Each fellow is expected to develop an individual

research project by the end of the first training year and a publishable article by the end of the

second year in addition to submitting at least one grant application related to the research activity.
Capacity Building for Rehabilitation Research Training 8-17

Advanced Rehabilitation Research Training Projects

Illinois

Rehabilitation Science for Engineers and Basic Scientists: An

Advanced Training Program

Northwestern University

Rehabilitation Institute of Chicago

345 East Superior Street, Room 1406

Chicago, IL 60611

w-rymer@northwestern.edu

Principal Investigator: W. Zev Rymer, MD, PhD

Public Contact: 312/238-3919; Fax: 312/908-2208

Project Number: H133P990006

Start Date: February 1, 1999

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $148,323; FY 00 $148,752; FY 01 $148,724; FY 02 $148,720

Abstract: The goal of this program is to increase the number of PhD engineers and basic scientists

trained to perform research aimed at solving problems of people with disabilities. To meet this

objective, the project trains postdoctoral scientists in three areas of special expertise: musculoskeletal biomechanics; neurorehabilitation; and prosthetics, orthotics, and biomaterials. Targeted technical training is coordinated with intensive clinical instruction and experience. Postdoctoral trainees,

including scientists and engineers from minority or disability groups, are recruited by regional and

national advertising and via the Internet. Many training faculty are based within the Rehabilitation

Institute of Chicago, providing access to active clinical rehabilitation programs, and interaction both

with clinical faculty and people with disabilities.
8-18 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training

University of Illinois/Chicago

Department of Disability and Human Development

College of Health and Human Development Sciences

1640 West Roosevelt Road

Chicago, IL 60608-6904

theller@uic.edu

http://www.uic.edu/depts/idhd

Principal Investigator: Tamar Heller, PhD

Public Contact: 312/413-1537; Fax: 312/996-6942

Project Number: H133P000005

Start Date: April 1, 2000

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $150,000; FY 01 $150,000; FY 02 $150,000

Abstract: This project provides an intensive interdisciplinary postdoctoral training program for

disability and rehabilitation research scholars. The program combines immediate immersion in an

ongoing research program with a focused didactic training experience, providing trainees with

knowledge of the critical values, current issues, and innovative approaches in contemporary disability research. The training is offered through a cooperative effort of three units within the College of

Health and Human Development Sciences: the Department of Disability and Human Development,

Department of Occupational Therapy, and the Department of Physical Therapy. These departments

have an established record of successful collaboration in advanced training, including creating the

Interdisciplinary Doctor of Philosophy (PhD) in Disability Studies at UIC, a unique interdisciplinary

doctoral program that addresses the multidimensional nature of disability. A central theme of this

program is that the current fragmentation of knowledge regarding disability can be rectified only by

preparing future scholars and researchers who have a coherent, integrated, and in-depth knowledge

of the multidimensional nature of disabilities. All three academic units offering this advanced

research training have senior faculty with established, ongoing research programs capable of guiding

postdoctoral training in three specialized content areas of disability research: disability measurement, disability experience, and disability service and policy.
Capacity Building for Rehabilitation Research Training 8-19

Advanced Rehabilitation Research Training Projects

Kansas

Rehabilitation Research Training Program

University of Kansas

Beach Center on Disability

Haworth Hall, Room 3136

1200 Sunnyside Avenue

Lawrence, KS 66045-7534

turnbull@ukans.edu

http://www.beachcenter.org

Principal Investigator: Ann Turnbull, PhD, 785/864-7608

Public Contact: Anette Lundsgaarde, 785/864-7601; Fax: 865/864-5825

Project Number: H133P70004

Start Date: July 1, 1997

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 97 $150,000; FY 98 $150,000; FY 99 $150,000; FY 00 $150,000; FY 01

$150,000; FY 02 (No-cost extension through 6/30/03)

Abstract: This project increases the quantity of new postdoctoral and doctoral researchers and

ensures their competency along family-systems, life-span, and multicultural dimensions. Focusing

on families whose members have disabilities, the scholars become capable of conducting independent research related to: (1) the families studied; (2) rehabilitation and special education agencies,

systems, and processes; and (3) families and individuals from culturally and linguistically diverse

backgrounds who are served by those systems. The postdoctoral fellows collaborate with faculty

from the Beach Center, Special Education Department, and other faculty in learning and conducting

disability and family research for a full year. The doctoral trainees take their PhD degrees in special

education, majoring in family and disability studies and minoring in research methodologies.
8-20 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Massachusetts

The Development, Implementation, and Evaluation of a Research

Training Program in Psychiatric Rehabilitation

Boston University

Sargent College of Health and Rehabilitation Sciences

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215

erogers@bu.edu

http://web.bu.edu/SARPSYCH

Principal Investigator: Sally E. Rogers, PhD

Public Contact: Marsha Ellison, 617/353-3549 (V); Fax: 617/353-7700

Project Number: H133P70014

Start Date: March 1, 1997

Length: 60 months

NIDRR Officer: Roseann Rafferty

NIDRR Funding: FY 97 $147,489; FY 98 $147,489; FY 99 $147,489; FY 00 $147,489; FY 01

$147,489; FY 02 (No-cost extension through 1/31/2003)

Abstract: In this program, six individuals who possess doctoral-level clinical training are recruited

and provided with a broad-based, intensive 27-month training fellowship in rehabilitation research.

To provide an optimal training experience, three fellows are in residence at a time. Each fellow

gains competency in the following areas: psychiatric rehabilitation, research design/methodology,

statistics, consumer issues (as they relate to applied research), the conduct of applied rehabilitation

research, computer literacy, and grant and professional writing.
Capacity Building for Rehabilitation Research Training 8-21

Advanced Rehabilitation Research Training Projects

Massachusetts

An Integrated Rehabilitation Engineering Research Training Program

Boston University

44 Cummington Street

Boston, MA 02215

jcollins@bu.edu

Principal Investigator: James J. Collins, PhD

Public Contact: 617/353-0390; Fax: 617/353-5462

Project Number: H133P990003

Start Date: February 1, 1999

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $149,915; FY 00 $149,915; FY 01 $149,915; FY 02 $149,915

Abstract: The goal of this project is to establish a clinically oriented, scientifically grounded educational program for training biomedical engineering (BME) postdoctoral fellows in rehabilitation

engineering. The overall objective of the program is to produce biomedical engineers who are

capable of communicating and interacting with physician investigators in a significant and meaningful manner, and who are capable of defining and solving clinically relevant problems in rehabilitation engineering. The specific objectives of this project are: (1) to establish a core faculty and

administrative structure for the training program; (2) to provide BME postdoctoral fellows with the

opportunity to participate in clinical educational rotations in physical medicine and rehabilitation

(PM&R) and geriatrics; (3) to provide BME postdoctoral fellows and medical trainees in geriatrics

or PM&R with the opportunity to collaborate on clinically relevant research projects; and (4) to

establish a rehabilitation engineering curriculum that includes didactic sessions on clinical research

methodology, as well as a seminar series to expose trainees to leaders in the field and develop their

own expertise in giving scientific presentations. Accordingly, this program trains a new cadre of

biomedical engineers with the knowledge and skills to develop innovative rehabilitation technologies that directly benefit individuals with disabilities.
8-22 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Massachusetts

Rehabilitation Health Services Research Fellowship Program

Boston University

Sargent College of Health and Rehabilitation Sciences

635 Commonwealth Avenue

Boston, MA 02215

mtripodi@bu.edu

http://www.bu.edu/cre/training

Principal Investigator: Alan M. Jette, PhD, 617/353-2704

Public Contact: Maria Tripodi, 617/353-4202; Fax: 617/353-1355

Project Number: H133P990004

Start Date: June 1, 1999

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $149,999; FY 00 $149,429; FY 01 $149,999; FY 02 $149,999

Abstract: This program provides health services research training experience for doctoral-level

professionals from the rehabilitation disciplines. The primary goal is to qualify these fellows to

conduct independent, high quality, funded health services research on problems related to disability

and rehabilitation. Specific goals of the program include: (1) providing intensive, broad-based health

services research training consisting of didactic coursework offered by faculty of Boston University

to a total of six postdoctoral fellows over the course of the five-year project; (2) providing each

fellow with the opportunity to conduct rehabilitation health services research under the guidance of

a faculty mentor from Boston University; and (3) critically evaluating this rehabilitation health

services research training program, including the recruitment, academic preparation, mentoring, and

the career development of participating fellows. Through state-of-the-art training and mentoring, the

project contributes to the creation of a cadre of highly skilled health services researchers equipped to

conduct research that improves the measurement of rehabilitation outcomes, evaluate new and

existing rehabilitation inventions, and broadly apply health services research methods to the improved organization and management of rehabilitation services in this changing health care environment.
Capacity Building for Rehabilitation Research Training 8-23

 ̃Advanced Rehabilitation Research Training Projects

Massachusetts

Advanced Research Training Program in Psychiatric Rehabilitation

Boston University

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue

Boston, MA 02215-1303

zlatka@bu.edu; ellison2@bu.edu

http://www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD; Marsha Ellison, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133P020011

Start Date: September 1, 2002

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $149,984

Abstract: This project prepares a cadre of six advanced-level researchers in the area of psychiatric

rehabilitation. The recruitment efforts target consumers, with the expectation that one or more

consumers will be selected for the training program. Six fellows are recruited over the course of the

project. The training program consists of two consecutive cycles of 2.25-year postdoctoral fellowships in psychiatric rehabilitation research. In order to optimize the training experience, three fellows are in residence during each cycle. While the fellowship is designed to provide broad- based

intensive training in psychiatric rehabilitation research, the six fellows develop a particular expertise

in conducting recovery-oriented research, given the current research profile of the Center for Psychiatric Rehabilitation at Boston University. Through a variety of training modalities fellows acquire

competencies in the following areas: psychiatric rehabilitation and recovery oriented systems,

recovery framework and consumer issues, research design/methodology, statistics, computer literacy, conduct of applied rehabilitation research, and grant and professional writing.
8-24 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Michigan

The UMHS/MSU/AACIL Rehabilitation Research Training Program

University of Michigan

Department of Physical Medicine and Rehabilitation

Rehabilitation Psychology

1H241 - University Hospital

1500 East Medical Center Drive

Ann Arbor, MI 48109-0050

dgtate@umich.edu

http://www.med.umich.edu/pmr/arrtp/

Principal Investigator: Denise G. Tate, PhD

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133P990014

Start Date: February 1, 1999

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $149,955; FY 00 $150,000; FY 01 $149,923; FY 02 $150,000

Abstract: Through this research training experience, PhD and MD fellows and resident trainees

acquire and enhance research skills, learn to collaborate effectively across important rehabilitation

areas and disciplines, learn to demonstrate a capacity to apply the results of research to the formulation of disability policy, and develop skills that result in successful research proposals, thereby

ensuring continuance of outstanding rehabilitation research. Emphasizing the consumer-scientistpractitioner model, this multidisciplinary research training program utilizes faculty and resources

from both the University of Michigan and Michigan State University, and the Ann Arbor Center for

Independent Living to train six postdoctoral-level professionals and ten Physical Medicine and

Rehabilitation (PM&R) resident physicians in advanced rehabilitation research. A variety of didactic

and practical experiences make up this research training program. These include participation in

academic courses available at two university campuses, research seminars, presentations and lectures

at meetings and national conferences, and an opportunity to work collaboratively on research

projects being conducted at the three sites. Fellows and resident trainees select from a curriculum

that focuses on four content areas: (1) VR and AT; (2) health/medical rehabilitation outcomes; (3)

independent living and community integration; and (4) socioeconomic aspects of rehabilitation.
Capacity Building for Rehabilitation Research Training 8-25

Advanced Rehabilitation Research Training Projects

Missouri

Research Enrichment Program for Physiatrists

University of Missouri/Columbia

Research Enrichment Program

Harry S. Truman Veterans’ Hospital

800 Hospital Drive, Room C227B

Columbia, MO 65201

williamsjan@health.missouri.edu

http://www.hsc.missouri.edu/~rep

Principal Investigator: Jerry C. Parker, PhD

Public Contact: Janet L. Williams, Project Coordinator, 573/882-1632; Fax: 573/884-4188

Project Number: H133P80009

Start Date: April 1, 1998

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 98 $150,000; FY 99 $150,000; FY 00 $150,000; FY 01 $150,000; FY 02

$150,000

Abstract: This project trains ten physiatry residents and junior faculty annually in the basic methodological skills and academic values required to conduct independent research projects. Participants

in enrichment programs travel periodically to a central location (or locations) to receive intensive

enrichment experiences. Participants are carefully mentored through the successive steps required

for an independent research project. Through the use of carefully designed teaching modules and

individualized instruction, ten participants per year are guided through the steps of an independent

research project, including understanding research design, developing skills for statistical collaboration, preparing research manuscripts, presenting at scientific meetings, understanding peer review

procedures, and applying for extramural funds. Scholarships are used to cover travel expenses for

participants, and research accounts are used to defray the expenses associated with data collection.

Over the course of one year, participants travel to six centralized training locations. Participants are

required to plan and implement a thesis-like project in their home institutions and to present their

research findings.
8-26 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

New Jersey

Advanced Rehabilitation Research Training Center on Outcomes and

Intervention Effectiveness

University of Medicine & Dentistry of New Jersey

Department of Physical Medicine and Rehabilitation, B261

150 Bergen Street

West Orange, NJ 07103

mjohnston@kmrrec.org

http://www.kmrrec.org/KM/careers/outcomes_fellows.php3

Principal Investigator: Mark V. Johnston, PhD, 973/731-3600

Public Contact: Heidi Workman, 973/243-2015; Fax: 973/243-6963

Project Number: H133P020012

Start Date: March 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $149,847

Abstract: This postdoctoral research training program develops researchers who advance knowledge of the impact of interventions—medical, activity-based, social-psychological, and environmental—on outcomes for persons with physical and neurological disabilities. The program emphasizes the

actual conduct of research, leading to publications. Outcomes-related study topics include research on

prognosis and severity adjustment, treatment guidelines, quality improvement strategies, cost- effectiveness, and issues of health policy. Fellows typically begin by participating in one or more research

projects suggested by their mentor and studying to improve their knowledge and skills. Fellows also

develop their own research grant proposals. The program is supported by the University of Medicine

and Dentistry of New Jersey/New Jersey Medical School (UMDNJ/NJMS) and the Kessler Medical

Rehabilitation Research and Education Corporation (KMRREC).
Capacity Building for Rehabilitation Research Training 8-27

Advanced Rehabilitation Research Training Projects

New York

Advanced Rehabilitation Research Training

Mount Sinai School of Medicine

One Gustave L. Levy Place

New York, NY 10029-6574

mary.hibbard@mssm.edu

http://www.mssm.edu/tbinet

Principal Investigator: Mary R. Hibbard, PhD

Public Contact: 212/659-9374; Fax: 212/348-5901

Project Number: H133P000001

Start Date: September 1, 2000

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $138,006; FY 01 $140,382; FY 02 $140,341

Abstract: This project provides advanced rehabilitation research training to nine postdoctoral

psychology fellows. Each fellow participates in the ongoing research of the NIDRR-funded Rehabilitation Research and Training Center (RRTC) on Community Integration of Individuals with

Traumatic Brain Injury. The goals of the training are to: (1) increase the number of researchers in

the field of rehabilitation, (2) enhance knowledge of rehabilitation research, (3) disseminate research

findings within the consumer community, and (4) train fellows to become part of an interdisciplinary research team. The RRTC is a model program of Participatory Action Research (PAR) that

focuses on four core research areas: quality of life/outcome measurement, disability over the life

span, models of community integration, and psychosocial challenges of persons with a disability.
8-28 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Texas

Interdisciplinary Rehabilitation Research Training Program

University of Texas Medical Branch

301 University Boulevard

Galveston, TX 77555-1137

kottenba@utmb.edu

http://www.sahs.utmb.edu/rehab/

Principal Investigator: Kenneth J. Ottenbacher, PhD

Public Contact: 409/747-1637; Fax: 409/747-1638

Project Number: H133P990001

Start Date: July 1, 1999

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 99 $129,562; FY 00 $129,562; FY 01 $139,562; FY 02 $128,482

Abstract: This project provides postdoctoral research opportunities to qualified individuals interested in clinical and academic careers related to rehabilitation research. Three postdoctoral fellows

plan, conduct, and disseminate research in one of the following areas: Cognitive/Neurological

Rehabilitation, Applied Biomechanics/Physiology of Rehabilitation, and Geriatric Rehabilitation.

Each rehabilitation research fellow selects one of the three research areas and conducts clinical

investigations for up to three years. Outcomes include published research studies, presentations at

national scientific meetings, submission of grant proposals, completion of research-related courses,

training in techniques of dissemination, and the development of interdisciplinary research networks.

In addition to participating in clinical research activities, each fellow completes a series of core

courses and directed study related to interdisciplinary research and the ethics associated with scientific inquiry in rehabilitation. The activities of each postdoctoral fellow are directed and monitored

by a fellowship supervisor with a demonstrated ability to implement, conduct, and disseminate the

results of research investigations important to the advancement of rehabilitation science.
Capacity Building for Rehabilitation Research Training 8-29

Advanced Rehabilitation Research Training Projects

Texas

Advanced Rehabilitation Research Training

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

One Baylor Plaza

Houston, TX 77030

drintala@bcm.tmc.edu

http://public.bcm.tmc.edu/pm&r/education/Fellowships/RehabResearch.html

Principal Investigator: Diana H. Rintala, PhD, 713/791-1414, ext. 5807

Public Contact: Daisy McKenzie, 713/799-5033; Fax: 713/794-7623

Project Number: H133P020003

Start Date: October 1, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $150,000

Abstract: This program trains postdoctoral fellows in the skills necessary to become independent

investigators in rehabilitation. Research training in the Department of Physical Medicine and Rehabilitation is multidisciplinary in nature, and encompasses the spectrum from basic mechanism to

societal integration. Through this program, fellows develop research expertise in spinal cord injury,

stroke, Parkinson’s disease, amputee rehabilitation, neuropsychological rehabilitation/cognitive

neuropsychology, rehabilitation outcomes, and social policy. The coursework includes topics such as

research methodology, statistical methods, ethical issues, special populations, and scientific writing.

The Applied Rehabilitation Research Course complements the Clinical Scientist Training Program

by emphasizing the unique characteristics of research in rehabilitation. Fellows also participate in

other education activities such as the department’s Research, Education, and Development Seminar

and are expected to present and produce documentation for publication on their independent research and prepare applications for federal funding building on their project for career development.

They also attend, and submit abstracts for presentation at, national professional meetings to begin to

integrate into the greater rehabilitation research community.
8-30 Capacity Building for Rehabilitation Research Training

Advanced Rehabilitation Research Training Projects

Virginia

Research Training and Career Development Program

Virginia Commonwealth University

Department of Physical Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0542

jskreutz@hsc.vcu.edu

http://www.neuro.pmr.vcu.edu

Principal Investigator: Jeffrey S. Kreutzer, PhD

Public Contact: Jennifer Marwitz, 804/828-3704; Fax: 804/828-2378

Project Number: H133P70003

Start Date: September 1, 1997

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 97 $142,430; FY 98 $149,971; FY 99 $149,971; FY 00 $142,430; FY 01

$142,430; FY 02 (No-cost extension)

Abstract: This project increases the number of highly skilled rehabilitation research professionals

through an advanced research training program. The research training program is built upon an

existing network of research, clinical care, and teaching resources: on-campus resources include the

nation’s third largest teaching hospital, an NIH Head Injury Center, a Rehabilitation Research and

Training Center, and NIDRR TBI and SCI model systems of care. Program philosophy emphasizes

interdisciplinary collaboration, creativity, quality, and diligence, and emphasizes applied research; it

provides training to individuals with advanced degrees who are committed to a career in rehabilitation. A distinguished interdisciplinary faculty represents fields within basic sciences, biostatistics

and methodology, medicine, psychology, computing and telecommunications, allied health fields,

and VR.
Capacity Building for Rehabilitation Research Training 8-31

Advanced Rehabilitation Research Training Projects

Wisconsin

Advanced Rehabilitation Research Training for Physicians and

Biomedical Engineers

Marquette University

Orthopaedic and Rehabilitation Engineering Center

735 North 17th Street

P.O. Box 1881

Milwaukee, WI 53201

gerald.harris@marquette.edu

http://www.eng.mu.edu/rehab/orec.htm

Principal Investigator: Gerald Harris, PhD, 414/288-0698

Public Contact: Deborah Epps, Project Administrator, 414/288-0696; Fax: 414/288- 0713

Project Number: H133P020004

Start Date: July 1, 2002

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $84,566

Abstract: This project develops expertise, enthusiasm, and productivity in rehabilitation research

that results in an increase in the number of rehabilitation- trained physicians and biomedical engineers able to conduct independent transdisciplinary research on problems related to disability and

rehabilitation. The program is specifically designed to give the postdoctoral trainees the skills

needed to become productive career researchers. The training program utilizes a rehabilitation

research team consisting of a focused cadre of mentors and two postdoctoral fellows (one physicalmedicine-and-rehabilitation-trained MD and one postdoctoral biomedical engineer). The trainees are

enrolled in the research training program for 18 months. A total of three physicians and three biomedical engineers participate in this training program over the five-year period.
8-32 Capacity Building for Rehabilitation Research Training

NIDRR Contracts NIDRR Contracts

Virginia

Technical Support for Computer and Other Related Activities

Conwal, Inc.

6858 Old Dominion Road

McLean, VA 22101

snewman@conwal.com

http://www.conwal.com

Principal Investigator: Shelia Newman

Public Contact: 703/448-2300 (V); 703/448-3079 (TTY); Fax: 703/448-3087

Project Number: ED-98-CO-0004

Start Date: January 9, 1998

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 98 $500,000; FY 99 $962,042; FY 00 $360,430; FY 01 $253,514; FY 02

(No-cost extension through 1/7/03)

Abstract: This project provides technical support to NIDRR for computer-based and other related

activities. Activities include data collection and tabulation, database and management information

system development, statistical analyses, literature reviews, small surveys, and focus group meetings. Active projects involve analysis and design of a management information system for NIDRR,

focus groups for planning the research agenda, and electronic dissemination.
Capacity Building for Rehabilitation Research Training 8-33

NIDRR Contracts

Virginia

Technical Support for Assessment of Management and Ancillary

Activities of the National Institute on Disability and Rehabilitation

Research

Cherry Engineering Support Services, Inc

6858 Old Dominion Drive, Suite 250

McLean, VA 22101

snewman@cessi.net

http://www.cessi.net

Principal Investigator: Shelia Newman

Public Contact: 703/448-6155; Fax: 703/442-9015

Project Number: ED-00-CO-0079

Start Date: September 7, 2000

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 00 $695,717; FY 01 $245,885

Abstract: This project performs a wide range of technical and support activities for NIDRR, including data collection and analysis, literature reviews, issue analysis and reports, program management

evaluation, conference planning and support, and development of information and database systems.

Task orders completed and in process have ranged from the design and implementation of a peer

review database, analysis of a standing panel peer review model, analysis of intellectual property

issues related to technology transfer, support for the development of NIDRR’s Long- Range Plan,

outreach and networking with disability experts, and numerous meetings and conferences. Two

major tasks are the Design and Conduct of the Program Review Process and Technical Support for

the Interagency Committee on Disability Research (ICDR). Program Review is designed to assess

the level of grantee excellence in administration, scientific rigor, relevance and productivity, and

capacity building. Each year CESSI staff arrange and conduct quarterly meetings of the ICDR and

meetings of the Subcommittees on Disability Statistics, Medical Rehabilitation, and Technology. An

Internet “gateway” for federally funded disability research is under development and staff prepares

reports to Congress and other reports as needed.
State Technology Assistance

This program, funded under Title I of the the Assistive Technology Act of 1998,

supports consumer-driven Grants to States. Currently there are 56 projects that provide statewide, comprehensive, technology-related assistance for individuals with

disabilities of all ages. The purpose of the program is to increase and improve access

to assistive technology devices and services through public awareness and information, advocacy, outreach, technical assistance and training, and interagency coordination.

Contents

Assistive Technology Technical Assistance Projects ................................................................................. 3

Alternative Financing Programs ............................................................................................................... 5

State Technology Assistance Projects.................................................................................................... 20

Protection and Advocacy Projects ........................................................................................................ 76

State Technology Assistance Projects 9-3

Assistive Technology Technical Assistance Projects Assistive Technology Technical Assistance Projects

California

Assistive Technology Act Data Collection Project

InfoUse

2560 Ninth Street, Suite 216

Berkeley, CA 94710-2557

ljans@infouse.com

http://www.infouse.com/atdata

Principal Investigator: Lita Jans, PhD, 510/549-6509

Public Contact: 510/549-6520; Fax: 510/549-6512

Project Number: H224B990001

Start Date: September 30, 1999

Length: 48 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 99 $338,000; FY 00 $301,000; FY 01 $301,243; FY 02 $301,000

Abstract: The Assistive Technology Act Data Collection Project provides a Web-based performance

standards reporting system that conforms to NIDRR policy and the requirements of the Government

Performance and Results Act (GPRA) of 1993. The data elements and measures were developed

through a broadly inclusive process involving the AT Act State Program grantees and other key

stakeholders. InfoUse also provides national and state estimates of the need for and use of AT, as well

as other useful information on the availability and use of AT devices and services, including a study on

AT and employment. In addition, the project provides descriptive and evaluative information on model

approaches that reduce fragmentation of devices and that build the capacity of organizations to deliver

services. In conducting this project, InfoUse works closely with the 56 state and territorial AT Act

grantees, the Technical Assistance Projects to the AT Act State Program and P&A Program grantees,

the National AT Internet Site project, as well as consumers, service providers, advocates, and experts

in the field.
9-4 State Technology Assistance Projects

Assistive Technology Technical Assistance Projects

Virginia

Technical Assistance Project

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)

1700 North Moore Street, Suite 1540

Arlington, VA 22209

resnata@resna.org

http://www.resna.org/taproject

Principal Investigator: M. Nell Bailey

Public Contact: 703/524-6686, ext. 305 (V); 703/524-6639 (TTY); Fax: 703/524-6630

Project Number: H224B020001

Start Date: October 1, 2002

Length: 36 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 02 $525,000

Abstract: This project assists the 56 state Assistive Technology Act (AT Act) grantees in reducing

barriers and increasing access to AT devices and services for consumers with disabilities of all ages

through capacity building initiatives. The needs of the state AT Act grantees are continually assessed

and plans are tailored to provide timely, responsive, and proactive technical assistance to meet those

needs. Delivery strategies include onsite visits, training by peers (States Helping States) and expert

consultants, national meetings focused on project implementation issues, publication development on

grantees’ impact, models of best practice and policy issues, online services, and other communication

tools. The project maintains a content-rich, accessible web site that serves as the grantees’ prime

resource for information dissemination. Areas of the web site include a Policy Information Pipeline,

links to other related resources, and a private area designated specifically for grantees to share and

exchange information. A reference library on the web contains publications and documents that can be

easily accessed and downloaded.
State Technology Assistance Projects 9-5

Alternative Financing Programs Alternative Financing Programs

Arizona

The Arizona Loans for Assistive Technology Program (AzLAT)

Northern Arizona University

Institute for Human Development

4105 North 20th Street, Suite 260

Phoenix, AZ 85016

jill.oberstein@nau.edu

http://www.nau.edu/ihd/aztap

Principal Investigator: Jill S. Oberstein, 602/728-9532

Public Contact: 800/477-9921 (V); 602/728-4670 (V); 602/728-9536 (TTY); Fax: 602/728-9535

Project Number: H224C010008

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 01 $150,000; FY 02 (No-cost extension through 9/30/03)

Abstract: Arizona Loans for Assistive Technology (AzLAT) is a consumer-driven, statewide alternative financing program that makes affordable loans available to Arizona residents with disabilities for

the purchase of AT devices. The program is designed to promote access to AT devices for persons with

disabilities by creating a dignified alternative to traditional loan programs. AzLAT is a loan guarantee

program; loans made to qualified borrowers by the bank are guaranteed by AzLAT in case of borrower

default. The program addresses the needs of persons of low to middle income who have disabilities,

including individuals from underrepresented groups desiring loans to purchase AT, but due to credit

history or income issues would be ineligible for most traditional bank loan programs. Key elements of

consumer support provided by the program include informed consumer choice, avoidance of unnecessary debt, support for consumers completing the application process, and support for repaying loans in

a timely manner. These elements are provided by the member organizations of the Consumer Support

Network and/or the AzLAT Program.
9-6 State Technology Assistance Projects

Alternative Financing Programs

Arkansas

Arkansas Technology Alternative Financing Project (AFP)

Arkansas Rehabilitation Services

Department of Workforce Education

1616 Brookwood Drive

P.O. Box 3781

Little Rock, AR 72203

sogaskin@ars.state.ar.us

http://www.arsinfo.org

Principal Investigator: Sue Gaskin

Public Contact: 501/683-6052; Fax: 501/296-1141

Project Number: H224C010009

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $1,200,000; FY 02 (No-cost extension through 9/30/2003)

Other funding: FY 01 $400,000 (State of Arkansas)

Abstract: This program administers a revolving loan fund program of approximately $1.6 million so

Arkansas residents with disabilities can secure the technology they need. Activities include: (1) establishing a solid infrastructure that enables the AFP to continue indefinitely, with a consumer-weighted

Loan Fund Committee that is integrally involved in developing the guidelines that drive the AFP’s

implementation and serve as an ongoing resource; (2) designing and implementing an aggressive

marketing campaign to assure that knowledge of this important resource is widespread; (3) making

loans available for individuals with disabilities for up to $50,000 with 20-year terms, allowing them to

purchase technology regardless of age and financial status when the capacity to repay the loan exists.

The result is that thousands of Arkansans have enhanced access to loans with flexible terms. Applicants are offered information and assistance to assure they have what they need to make truly informed

choices. Additionally, consumer advocacy groups and others receive training on how to assist consumers in obtaining needed technology through this revolving loan fund.
State Technology Assistance Projects 9-7

Alternative Financing Programs

Illinois

Techconnect Low Interest Loan Program: Alternative Financing

Program

Illinois Assistive Technology Project

1 West Old State Capitol Plaza, Suite 100

Springfield, IL 62701-1200

iatp@iltech.org

http://www.iltech.org

Principal Investigator: Wilhelmina Gunther

Public Contact: Sue Castles, Project Director, 800/852-5110 (V/TTY, in state only); 217/522-7985

(V); 217/522-9966 (TTY); Fax: 217/522-8067

Project Number: H224C010022

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $2,250,000; FY 02 (No-cost extension through 9/30/2003)

Abstract: In the Illinois alternative financing program individuals with disabilities and their families or

guardians, who historically have had difficulty obtaining or repaying traditional bank loans, are provided assistance in borrowing money to obtain the AT they need. In some cases the program also

assists in establishing a positive credit history. The program lowers interest rates, offers extended

repayment plans, and relaxes standards for determining credit worthiness. Interest earned by the

program on low-risk investments is used to re-capitalize the fund. Statewide infrastructure allows

multiple entry points for completing the loan application and obtaining additional supports regarding

budgeting and financial planning. The program is a public-private partnership; in addition to the state,

the other partners are the Illinois AT Project, the program administrator; the state’s Centers for Independent Living, who handle outreach, marketing, assistance with loan processing, consumer training on

budgeting, and serve on the application review committee; Town and County Bank, the financial

lending institution, and MSF&W, a software consulting firm that develops an accessible online loan

application program.
9-8 State Technology Assistance Projects

Alternative Financing Programs

Kansas

Assistive Technology for Kansans Alternative Financing Program

University of Kansas Center for Research, Inc.

Schiefelbusch Institute for Life Span Studies

2601 Gabriel Avenue

P.O. Box 738

Parsons, KS 67357

ssack@ukans.edu

http://www.atk.lsi.ukans.edu

Principal Investigator: Sara H. Sack, PhD, 316/421-8367

Public Contact: Assistive Technology for Kansans, 800/526-3648 (800/KAN DO IT, in state only);

316/421-8367 (V/TTY); Fax: 316/421-0954 (Fax/TTY)

Project Number: H224C000011

Start Date: October 1, 2000

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $742,576; FY 01 (No-cost extension through 9/30/02) FY 02 (No-cost

extension through 9/30/2003)

Abstract: The Assistive Technology for Kansans project (ATK) and the Kansas Assistive Technology

Cooperative (KATCO) are working together to expand personal financing options for the purchase of

assistive devices or services. The alternative financing program is operated by KATCO, a nonprofit

organization, established and directed by persons with disabilities. KATCO currently manages a

revolving loan program and operates a loan guarantee program through both a regional and a statewide

credit union. The new program supports the expansion of the scope and utility of the current AT loan

program. The program addresses issues related to the operation of the two loan programs. Specifically,

public awareness efforts assure that statewide coverage and supports are in place to expand the capacity to make loans. Individual Development Accounts enable individuals with disabilities to save money

for AT devices and services without declaring the money saved as an asset. KATCO goals are: (a) to

expand the consumer services offered, including financial planning and credit restoration for persons

with disabilities; (b) to expand its AT cooperative services through strategies such as group purchasing

and buying in bulk; (c) to explore the feasibility of operating a multistate cooperative; and (4) to

explore the feasibility of operating a consumer run financial cooperative, generally known as a credit

union.
State Technology Assistance Projects 9-9

Alternative Financing Programs

Kentucky

Loan Initiative Networking Kentuckians for Assistive Technology

(LINK-AT)

Kentucky Department of Vocational Rehabilitation

Cabinet for Workforce Development

209 St. Clair Street

Frankfort, KY 40601

nancye.hanson@mail.state.ky.us

http://www.kyatloan.org

Principal Investigator: Dave Matheis, 502/564-4440

Public Contact: Nancy Hanson, 859/246-2540; 877/675-0195 (in state only); Fax: 859/246-2545

Project Number: H224C010021

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Judith Fein

NIDRR Funding: FY 01 $1,050,000; FY 02 (No-cost extension through 9/30/2002)

Abstract: In this program a unique collaboration among public and private partners provides AT loans

to Kentuckians with disabilities. The goals of LINK-AT include: (1) increasing access to loans in all

areas of the state, (2) increasing awareness of the loan program among consumers and their families

and caregivers, (3) providing loans in a timely and efficient manner, (4) providing loans to individuals

who may not otherwise be able to access traditional lending programs, (5) increasing the overall

lending capacity of the Kentucky Assistive Technology Loan Corporation (KATLC) to $2.5 million,

and (6) developing permanent financial support for the loan program. The primary partners include

KATLC, the Kentucky Department for Vocational Rehabilitation, Fifth-Third Bank of Kentucky, the

Kentucky Housing Corporation (KHC), the Kentucky Assistive Technology Service (KATS) Network, the Kentucky Developmental Disabilities Council, five centers for independent living, and six

AT resource centers.
9-10 State Technology Assistance Projects

Alternative Financing Programs

Louisiana

Louisiana Alternative Financing Program

Louisiana Department of Health and Hospitals

LATAN

P.O. Box 14115

Baton Rouge, LA 70898

cpourciau@latan.org

http://www.latan.org

Principal Investigator: Julie M. Nesbit, 225/925-9500 (V/TTY)

Public Contact: Clara Pourciau, 800/270-6185 (V/TTY); 225/925-9500 (V/TTY); Fax: 225/925-

9560

Project Number: H224C010024

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $1,500,000; FY 02 (No-cost extension through 9/30/2003)

Abstract: This reduced-interest, fixed-rate, and extended-term AT loan program is available for

Louisiana residents of all ages and income brackets (and especially those of low and middle incomes),

with all types of disabilities. The project makes available guaranteed and non-guaranteed loans for a

broad variety of AT devices and services, including assessments, training, and extended warranties.

Built into the project budget are resources such as financial, credit, and peer-to-peer counseling

(through centers for independent living) as needed by consumers. The program administrators implement a structured program evaluation that measures overall effectiveness; the evaluation takes into

consideration consumer feedback and requested modifications to the loan program. The program is

coordinated by the Louisiana Assistive Technology Access Network (LATAN).
State Technology Assistance Projects 9-11

Alternative Financing Programs

Maryland

The Assistive Technology Guaranteed Loan Program: Partnerships for

Maximum AT Access

State of Maryland Office of Individuals with Disabilities

Maryland Technology Assistance Program

2301 Argonne Drive, T17

Baltimore, MD 21218-1696

loans@mdtap.org

http://www.mdtap.org

Principal Investigator: Michael Dalto

Public Contact: Tony Rice, Assistant Director, 410/554-9233; 800/832-4827; Fax: 410/554-9237

Project Number: H224C010016

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $1,104,974; FY 02 (No-cost extension through 9/30/2003)

Abstract: Maryland’s Assistive Technology Guaranteed Loan Program (ATGLP) provides loan

guarantees and interest buy-downs for AT loans for Maryland residents who have a disability. The

ATGLP guarantees loans of $500 to $30,000, with loan terms ranging of one to seven years. In its first

19 months of operation, the program approved 95 guaranteed loans (totaling more than $970,000 in

principal) and 7 nonguaranteed loans (totaling more than $46,000 in principal). The project has approved loans for a high percentage of the applicants from traditionally underserved groups. Innovative

efforts from the project’s partners include: (1) offering guaranteed loans or discounted rates for nonguaranteed loans from multiple lenders, (2) reducing costs for AT purchase, (3) increasing income and

resources for borrowers to make AT more affordable, (4) building alternative resources for AT evaluation and training, and (5) recycling computer equipment. The Maryland Centers for Independent

Living offer consumer counseling. The program funds a wide range of AT, excluding only building

modifications to rental units.
9-12 State Technology Assistance Projects

Alternative Financing Programs

Michigan

Michigan Assistive Technology Loan Fund

Michigan Disability Rights Coalition

740 West Lake Lansing Road, Suite 400

East Lansing, MI 48823

miatloanfund@aol.com

http://www.mi-atlf.org

Principal Investigator: Norm DeLisle

Public Contact: Kathryn Wyeth, Operations Director, 517/333-2477, ext. 35; Fax: 517/333-2677

Project Number: H224C010015

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $431,700; FY 02 (No-cost extension through 9/30/2003)

Other funding: FY 01 $143,900 (Herbert H. and Grace A. Dow Foundation)

Abstract: The Michigan Assistive Technology Loan Fund allows people with disabilities in Michigan

to obtain AT equipment and services either through project loans or through other means. Key objectives of the first project year include: (1) expand statewide from the current three pilot counties, (2)

expand marketing of the fund, and (3) grow project resources into a self-sustaining fund. Four key

attributes distinguish the Loan Fund as an effective tool: (a) people with disabilities with extensive

experience with AT developed it and are implementing it; (b) the fund demonstrates its commitment to

client-driven, client-chosen services by the principles and values it has adopted; (c) the fund enjoys

strong support statewide because a wide variety of stakeholders participated in a genuinely collaborative process; and (d) the Loan Fund partners with local Centers for Independent Living (CILs) to serve

as local intake and counseling points for loan applicants. While the Fund is strongly committed to the

principle that persons with disabilities should make their own choices about AT, CILs are uniquely

situated to provide AT information to assure applicants can make informed choices. Additionally, the

CILs are knowledgeable about other sources of funding than loans and about AT services such as

training, equipment trial before purchase, and repair, all of which enhance AT success. There is no

lower limit for loans, and the upper limit this pilot year is $20,000.
State Technology Assistance Projects 9-13

Alternative Financing Programs

Pennsylvania

Alternative Financing Program

Temple University

Institute on Disabilities/UAP

1301 Cecil B. Moore Avenue, 423 Ritter Annex

Philadelphia, PA 19122

piat@astro.temple.edu

http://www.temple.edu/inst_disabilities/PIAT

Principal Investigator: Diane Nelson Bryen, PhD, 214/204-1356

Public Contact: Amy S. Goldman, 800/204-7428 (V); 800/750-7428 (TTY); 215/204- 3862 (V);

215/204-1356 (V/TTY); Fax: 215/204-9371

Project Number: H224C000001

Start Date: October 1, 2000

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $500,000; FY 01 (No-cost extension through 9/30/2002) FY 02 (No-cost

extension through 9/30/2003)

Abstract: The Pennsylvania Assistive Technology Foundation (PATF), a community-based 501(c)(3)

organization, was created by the Institute on Disabilities/UAP in response to the need for an alternative

financing mechanism. The program is administered by the Institute on Disabilities/UAP and includes

$500,000 in federal funds and $800,000 in nonfederal funds. Institute on Disabilities/UAP activities

under the AFP grant include: (1) develop the PATF’s infrastructure to the point that it has adequate

staff and operational resources to operate independently of federal support; (2) expand the present

program through the identification of additional funds for loans of $3,000 and more, and additional

funds for the loan guarantee; (3) create a revolving loan program to allow for “small” loans, e.g. those

under $3,000, which the current lender deems too burdensome to handle; (4) increase outreach and

ease of access to the program, including the establishment of an network of volunteer “application

centers;” and (5) provide for external evaluation of the quality of customer service, consumer choice,

timeliness, and outcomes of the revolving and guarantee loan programs.
9-14 State Technology Assistance Projects

Alternative Financing Programs

Pennsylvania

Minority Outreach Program for Alternative Financing for Assistive

Technology

Temple University

Institute on Disabilities/UAP

1301 Cecil B. Moore Avenue, 423 Ritter Annex

Philadelphia, PA 19122

vdel@nimbus.temple.edu

http://www.temple.edu/inst_disabilities/PIAT

Principal Investigator: Diane Nelson Bryen, PhD; Amy S. Goldman, 215/204-1356 (Bryen); 215/

204-3862 (Goldman)

Public Contact: Virginia Del Sordo, 800/204-7428 (V, in state only); 800/750- 7428 (TTY); 215/204-

0452 (V); 215/204-1356 (V/TTY); Fax: 215/204-9371

Project Number: H224C010025

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $450,000; FY 02 (No-cost extension through 9/30/2003)

Abstract: This outreach and demonstration program targets African-Americans, Hispanic/Latinos, and

Southeast Asians and identifies effective strategies for enhancing minority access to alternate financing

programs (AFP) for assistive technology. The project includes the following goals: (1) increase outreach for and ease of access to alternative financing for AT for target minority groups through the

creation of a network of racially- and ethnically-based information centers; (2) increase the capacity of

the Pennsylvania Assistive Technology Foundation (PATF) and its network of subcontracted application centers to provide effective, culturally competent services; (3) attract more minority borrowers

through the creation of partnerships with minority-owned banks and lending institutions; (4) create

options that make loans more affordable to individuals who come to the PATF through minority banks;

(5) identify effective, replicable program structures that increase the ability of target minority groups to

access AT and AT financing; and (6) formalize and disseminate the model to a broad spectrum of

entities, including other AT Act projects, service providers known and used by the underrepresented

groups, disability agencies, groups run by and for people with disabilities, generic banking organizations, and disability, minority, and banking stakeholders.
State Technology Assistance Projects 9-15

Alternative Financing Programs

Utah

Alternative Financing Program

Utah State University

Utah Assistive Technology Foundation

6835 Old Main Hill

Logan, UT 84322-6835

uatf@cpd2.usu.edu

http://www.uatf.org

Principal Investigator: Martin E. Blair, 435/797-3886

Public Contact: Daryl McCarty, 801/273-7239; Fax: 801/273-7239

Project Number: H224C000004

Start Date: October 1, 2000

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $500,000; FY 01 (No-cost extension through 9/30/02) FY 02 (No-cost

extension through 9/30/2003)

Abstract: The Utah Assistive Technology Foundation has a collaborative partnership with First

Security Bank to provide an interest buy-down and small grant program to help people with disabilities

purchase AT devices and services. The activities are designed to expand the benefits and services of

the Foundation by: (1) decreasing the loan amount charged on loans for the purchase of AT to approximately 1 percent of the loan value (currently 2 percent); (2) increase the grant amount applied to loan

principle for the purchase of AT; (3) increase the interest buy-down amount for modified vehicles; (4)

increase public awareness activities with regard to the Foundation; and (5) increase the endowment

fund of the Foundation to provide ongoing funding for the activities listed above. Expanding the

current alternative financing system for AT devices and services enables greater numbers of consumers

with disabilities, their family members, personal assistants, advocates, and others to increase independence in home, school, work and community settings. The public awareness activities are targeted to

individuals with disabilities in both urban and rural areas of Utah. Underrepresented populations such

as Native American, Hispanic and the aging are the specific focus of public awareness activities. The

Foundation was developed by several entities in the state under the direction of the Utah Assistive

Technology Program (UATP), Utah’s AT Act state program.
9-16 State Technology Assistance Projects

Alternative Financing Programs

Utah

Utah Alternative Financing Program for Assistive Technology

Utah State University

Center for Persons with Disabilities

6835 Old Main Hill

Logan, UT 84322

uatf@cpd2.usu.edu

http://www.uatf.org

Principal Investigator: Marilyn Hammond, PhD

Public Contact: 800/524-5152; 435/797-3811; Fax: 435/797-2355

Project Number: H224C010013

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $525,000; FY 02 (No-cost extension through 9/30/2003)

Abstract: The Utah Alternative Financing Program for Assistive Technology expands the benefits and

services of the Utah Assistive Technology Foundation (UATF) by: (1) developing and implementing a

consumer- and minority-responsive infrastructure; (2) maintaining the project’s zero-percent-interestbuy-down for devices and services, increasing the loan interest buy-down amount for modified vehicles, and increasing the available endowment fund; (3) developing and evaluating a comprehensive

outreach and public awareness plan that includes targeting underrepresented and culturally diverse

communities; and (4) designing and implementing a comprehensive process and outcome evaluation

plan. By expanding the current alternative financing system for AT devices and services, the project

enables greater numbers of children and adults with disabilities and their family members to increase

independence in home, school, work, and community settings.
State Technology Assistance Projects 9-17

Alternative Financing Programs

Virginia

Alternative Financing Technical Assistance Project

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)

1700 North Moore Street, Suite 1540

Arlington, VA 22209-1903

http://www.resna.org/AFTAP

Principal Investigator: Nancy Meidenbauer

Public Contact: 703/524-6686. ext. 304 (V); 703/524-6639 (TTY); Fax: 703/524-6630

Project Number: H224C000200

Start Date: October 1, 2000

Length: 24 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 00 $200,000; FY 01 $299,999; FY 02 (No-cost extension through 12/30/2002)

Abstract: The Rehabilitation Engineering and Assistive Technology Society of North America

(RESNA) operates the Alternative Financing Technical Assistance Project (AFTAP) to support states

in establishing and maintaining Alternative Financing Programs (AFP). The purpose of the project is to

provide technical assistance (TA) to states in developing AFPs that reduce barriers to the availability of

AT and create new sources of funding for AT services and devices for people with disabilities of all

ages. Technical assistance and information dissemination and utilization activities have been designed

in order to achieve the project’s goals. These goals are: (1) to provide timely, responsive, and proactive

TA using a comprehensive model for delivery of TA, and (2) to address the TA needs of the states

currently receiving Title III funds and those states that are in the process of preparing applications for

AFP. The delivery strategies include on-site visits by expert consultants; a national meeting focused on

issues related to developing, implementing, and maintaining financial loan programs; targeted research

publications; and electronic services. A Web-based outcome data collection instrument enables collection of uniform data across state programs to assist in determining the outcomes and impact of the

availability of AT AFPs, by region and across the country, for individuals with disabilities.
9-18 State Technology Assistance Projects

Alternative Financing Programs

Virginia

Virginia Alternative Financing Program

Virginia Department of Rehabilitative Services (DRS)

Virginia Assistive Technology System (VATS)

8004 Franklin Farms Drive

P.O. Box K300

Richmond, VA 23288

loanfund@erols.com

http://www.vats.org

Principal Investigator: Kenneth Knorr, 804/662-9995

Public Contact: Mike Scione, 804/662-9993; Fax: 804/662-9478

Project Number: H224C010003

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $2,464,000; FY 02 (No-cost extension through 12/31/2003)

Abstract: This program increases access to and funding for AT for individuals with disabilities and

their families, creating a perpetual loan fund. Rehabilitation engineering and AT assessment services

are also provided under the auspices of the program. During this project term, loans are extended to

small businesses and nonprofits so they can purchase AT for employees with disabilities, purchase AT

or modify their facilities prior to hiring an employee with a disability, or modify facilities to accommodate customers with disabilities. Virginians with disabilities, their family members, and eligible businesses can also obtain low-interest, longer-term loans for accommodations and the purchase of AT

devices and services through a partnership with the Assistive Technology Loan Fund Authority

(ATLFA), a consumer- controlled organization, and SunTrust Bank, which provides loan financing

and administration. Other partners include Virginia’s Centers for Independent Living, which provide

consumer counseling for device selection, application completion, and financial counseling.
State Technology Assistance Projects 9-19

Alternative Financing Programs

Wisconsin

WisLoan: A Loan Guaranty Program to Provide Low Interest Loans to

Wisconsin Residents with Disabilities for Purchasing Assistive

Technology

Wisconsin Department of Health and Family Services (DHFS)

Office for Persons with Physical Disabilities (OPPD)

One West Wilson Street, Room 450

P.O. Box 7851

Madison, WI 53707-7851

lauxhm@dhfs.state.wi.us

Principal Investigator: Holly Laux O’Higgins

Public Contact: 608/266-8905; Fax: 608/267-3203

Project Number: H224C010017

Start Date: October 1, 2001

Length: 12 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $750,000; FY 02 (No-cost extension through 9/30/2003)

Abstract: WisLoan facilitates provision of low interest loans by participating banks so that Wisconsin

citizens with disabilities can purchase AT. Independence First, a community-based and consumercontrolled organization, administers WisLoan in partnership with banks and centers for independent

living to provide statewide services such as loan financing and servicing, AT assessments, and technical assistance. Information about WisLoan is disseminated through state and county human service

agencies, CILs, disability organizations, and governor-appointed councils. The banking partner also

disseminates program information and assists in the development of marketing materials.
9-20 State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Alabama

Alabama Statewide Technology Access and Response Project (STAR)

System for Alabamians with Disabilities

Alabama Department of Rehabilitation Services

2125 East South Boulevard

P.O. Box 20752

Montgomery, AL 36120-0752

tbridges@rehab.state.al.us

http://www.rehab.state.al.us/star

Principal Investigator: Steve Shivers

Public Contact: Ted Bridges, 800/782-7656 (V, in state only); 334/613-3480 (V); 334/613-3519

(TTY); Fax: 334/613-3485

Project Number: H224A30009

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 93 $520,670; FY 94 $540,000; FY 95 $580,000; FY 96 $536,900; FY 97

$574,900; FY 98 $710,052; FY 99 $730,000; FY 00 $688,624; FY 01 $516,468; FY 02 $344,312

Abstract: This project addresses nine goals: (1) to establish an organizational structure that maximizes

consumer participation; (2) to facilitate interagency collaboration in the development of policies and

procedures concerning technology services; (3) to maximize consumer participation at all levels of

project activities; (4) to establish a statewide consumer and family network; (5) to develop a statewide

consumer-responsive information and referral system; (6) to develop a public awareness campaign to

elevate the understanding of the benefits and use of technology for people with disabilities; (7) to

develop and provide technology training activities for consumers, their families, professionals, employers, and the general public regarding technology-related issues; (8) to advance positive policy and

funding changes that improve the procurement of and access to technology devices and services; and

(9) to develop and implement a project evaluation system and conduct ongoing needs assessment.
State Technology Assistance Projects 9-21

State Technology Assistance Projects

Alaska

Assistive Technologies of Alaska

Alaska Department of Labor and Workforce Development

Division of Vocational Rehabilitation

1016 West Sixth, Suite 205

Anchorage, AK 99501

james_beck@labor.state.ak.us

http://www.labor.state.ak.us/at/index.htm

Principal Investigator: Jim Beck

Public Contact: 800/478-4378 (V/TTY, in state only); 907/269-3569 (V/TTY); Fax: 907/269-3632

Project Number: H224A990001

Start Date: July 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $563,052; FY 91 $565,205; FY 92 $595,000; FY 93 $748,000; FY 94

$749,298; FY 95 $749,298; FY 96 $693,618; FY 97 $731,618; FY 98 $548,714; FY 99 $368,000; FY

00 $365,809; FY 01 $365,809; FY 02 $365,809

Abstract: Assistive Technologies of Alaska (ATA) is a systems change project funded under the

authority of the Tech Act. ATA has worked to establish a statewide, consumer-responsive system to

improve access to AT. The project has responded to the needs of Alaskans with disabilities by creating

training tools and resource documents; establishing a guaranteed loan program; achieving passage of

an AT consumer protection law; and setting up a statewide library system for access to technology. In

the last two years, the project is transitioning services to other permanent programs.
9-22 State Technology Assistance Projects

State Technology Assistance Projects

American Samoa

American Samoa Assistive Technology Service (ASATS) Project

Division of Vocational Rehabilitation

Department of Human Resources

Pago Pago, American Samoa 96799

edperei@blueskynet.as

Principal Investigator: Pete P. Galea’i

Public Contact: Edmund Pereira, Project Director, 011/684/699-1529 (V); 011/684/233-7874 (TTY);

Fax: 011/684/699-1376

Project Number: H224A30014

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $139,200; FY 94 $150,000; FY 95 $150,000; FY 96 $150,000; FY 97

$150,000; FY 98 $210,000; FY 99 $105,000; FY 00 $150,000; FY 01 $105,000; FY 02 $105,000

Abstract: This project addresses four goals: (1) identification, training, and support of people with

disabilities to provide direction and guidance to the American Samoa Assistive Technology Project; (2)

development and implementation of a system for individual and program needs assessment for AT; (3)

development and promotion, in collaboration and in partnership with existing agencies, of a consumer

responsive, culturally appropriate assistive technology service-delivery system; and (4) development

and implementation of a model multiagency information, education, and public awareness system.
State Technology Assistance Projects 9-23

State Technology Assistance Projects

Arizona

Arizona Technology Access Program (AzTAP)

Northern Arizona University

Institute for Human Development

4105 North 20th Street, Suite 260

Phoenix, AZ 85016

jill.oberstein@nau.edu

http://www.nau.edu/ihd/aztap

Principal Investigator: Jill Oberstein, Project Director

Public Contact: 800/477-9921 (V); 602/728-9534 (V); 602/728-9536 (TTY); Fax: 602/728-9535

Project Number: H224A40002

Start Date: October 1, 1994

NIDRR Officer: Judith Fein

NIDRR Funding: FY 94 $507,916; FY 95 $550,000; FY 96 $509,130; FY 97 $547,130; FY 98

$675,531; FY 99 $654,103; FY 00 $654,103; FY 01 $654,103; FY 02 $490,000

Abstract: This program increases access to AT services and devices for people with disabilities and

their families and facilitates the development of a coordinated, consumer-responsive AT servicedelivery system. The program includes seven goals: (1) to establish a program infrastructure that is

consumer responsive and promotes system change; (2) to increase consumer involvement; (3) to

increase interagency collaboration and coordination; (4) to increase awareness of the needs for, and

efficacy of, AT services and devices; (5) to increase the competencies and skills of providers and

consumers of AT services and devices; (6) to improve program and fiscal resources; and (7) to develop

and implement protection and advocacy services in support of the program. Priority activities include:

information and referral, training and technical assistance, outreach to underrepresented populations,

funding and policy analysis, advocacy, and research.
9-24 State Technology Assistance Projects

State Technology Assistance Projects

Arkansas

Arkansas Increasing Capabilities Access Network (ICAN)

Arkansas Rehabilitation Services

Department of Workforce Education

2201 Brookwood Drive, Suite 117

Little Rock, AR 72202

sogaskin@ars.state.ar.us

http://www.arkansas-ican.org

Principal Investigator: Barbara Gullett

Public Contact: 800/828-2799 (V/TTY, in state only); 501/666-8868 (V/TTY); Fax: 501/666-5319

Project Number: H224A90020

Start Date: October 1, 1989

NIDRR Officer: Judith Fein

NIDRR Funding: FY 89 $503,811; FY 90 $506,078; FY 91 $551,078; FY 92 $725,000; FY 93

$773,929; FY 94 $835,000; FY 95 $835,000; FY 96 $772,951; FY 97 $579,713; FY 98 $386,476; FY

99 $386,476; FY 00 $386,476; FY 01 $386,476; FY 02 $386,476

Abstract: This project’s activities and objectives include establishing a clearinghouse for technology,

expanding funding alternatives for technology, creating a consumer-responsive technology system

through legal remedies, expanding outreach programs, increasing system capacity through education

across professional and technical disciplines, and providing information and referral services.
State Technology Assistance Projects 9-25

State Technology Assistance Projects

California

California Assistive Technology System (CATS)

California Department of Rehabilitation

Independent Living and Systems Change Division

2000 Evergreen

P.O. Box 944222

Sacramento, CA 94244-2220

rharring@dor.ca.gov

http://www.atnet.org

Principal Investigator: Rita Harrington, 916/263-8676 (V)

Public Contact: George Moultri, 916/263-8687 (V/TTY); Fax: 916/263-8683

Project Number: H224A30008

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $550,000; FY 94 $680,000; FY 95 $900,000; FY 96 $833,000; FY 97

$871,121; FY 98 $1,337,103; FY 99 $1,315,675; FY 00 $1,315,675; FY 01 $986,765; FY 02

$657,838

Abstract: This project is administered by a unit within the lead agency, Department of Rehabilitation.

It is advised by an Assistive Technology Advisory Committee (ATAC), a majority of whose members

are consumers. The unit administers a transportation and AT loan guarantee program. The unit contracts with other entities to provide advocacy services, outreach, and training for underserved and rural

populations; establish AT centers in rural counties; and establish a nonprofit organization to conduct

other project activities and continue the project when grant funding ends. The nonprofit unit (AT

Network) operated by the California Foundation for Independent Living Centers (CFILC) includes a

toll-free AT information and referral service (800/390-2699 [V] and 800/900-0706 [TTY], in state

only), a project Web site, an AT news service, public awareness and marketing activities, interagency

coordination, and coordination of system change activities.
9-26 State Technology Assistance Projects

State Technology Assistance Projects

Colorado

Colorado Assistive Technology Project (CATP)

University of Colorado Health Sciences Center

Assistive Technology Partners

1245 East Colfax Avenue, Suite 200

Denver, CO 80218

cathy.bodine@uchsc.edu

http://www.uchsc.edu/atp

Principal Investigator: Cathy Bodine, Project Director, 303/315-1281

Public Contact: 800/255-3477 (in state only); 303/315-1280 (V); 303/837-8964 (TTY); Fax: 303/

837-1208

Project Number: H224A40014

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $540,140; FY 90 $542,571; FY 91 $577,571; FY 92 $609,538; FY 93

$690,407; FY 94 $780,000; FY 95 $780,000; FY 96 $722,000; FY 97 $541,529; FY 98 $361,019; FY

99 $361,019; FY 00 $361,018; FY 01 $361,019; FY 02 $361,019

Abstract: This project’s activities and objectives include a network of Technology Outreach Centers

throughout the state and a central AT resource center. Project activities include information, referral,

public awareness, training, technical assistance, and electronic networking linkages between local

agencies and the state. Systems-change activities include a task force on policy review and analysis,

ongoing advocacy education, and direct advocacy services through a contract with the state protection

and advocacy system.
State Technology Assistance Projects 9-27

State Technology Assistance Projects

Connecticut

Connecticut Assistive Technology Project

Connecticut Department of Social Services

Bureau of Rehabilitation Services

25 Sigourney Street, 11th Floor

Hartford, CT 06106

jficarro@aol.com

http://www.techact.uconn.edu

Principal Investigator: John M. Ficarro

Public Contact: 800/537-2549 (in state only); 860/424-4881 (V); 860/424-4839 (TTY); Fax: 860/

424-4850

Project Number: H224A20013

Start Date: October 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $525,000; FY 93 $554,000; FY 94 $580,000; FY 95 $520,000; FY 96

$500,000; FY 97 $538,000; FY 98 $651,365; FY 99 $629,937; FY 00 $472,453; FY 01 $314,969; FY

02 $314,969

Abstract: This program provides Connecticut residents with disabilities a single point of entry for

advocacy, information and referral, peer counseling, and access to objective expert advice and consultation. This system is founded on the principles of ready access to available technology, informed

choice, coordination, and maximum use of available resources and knowledge. The project’s lowinterest AT revolving loan fund serves as an alternative funding mechanism for individuals ineligible

for existing funding streams. The project has developed an equipment recycling program and is the

primary sponsor of an annual AT trade fair. Finally, the program is supported by an extensive training,

education, and public awareness component.
9-28 State Technology Assistance Projects

State Technology Assistance Projects

Delaware

Delaware Assistive Technology Initiative (DATI)

Center for Applied Science and Engineering

University of Delaware

Alfred I. duPont Hospital for Children

1600 Rockland Road

P.O. Box 269

Wilmington, DE 19899-0269

dati@asel.udel.edu

http://www.asel.udel.edu/dati

Principal Investigator: Beth A. Mineo Mollica, PhD, 302/651-6836

Public Contact: Joann McCafferty, Staff Assistant, 800/870-DATI (V/TTY, in state only); 302/651-

6790 (V); 302/651-6794 (TTY); Fax: 302/651-6793

Project Number: H224A10005

Start Date: September 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $501,562; FY 92 $505,146; FY 93 $550,616; FY 94 $620,000; FY 95

$620,000; FY 96 $573,934; FY 97 $611,928; FY 98 $695,827; FY 99 $521,870; FY 00 $347,921; FY

01 $347,914; FY 02 $347,914

Abstract: The DATI project has established county resource centers in each of Delaware’s three

counties. These centers serve as information and equipment resource sites, offering short-term equipment loans, training and demonstration workshops, and regular informational mailings. DATI also

offers a quarterly newsletter featuring articles on funding, equipment recycling, and general AT information. DATI assists consumers in locating funding for AT devices and services. Collaboration among

existing state agencies and consumer groups has enhanced assistive technology promotion further

throughout the state.
State Technology Assistance Projects 9-29

State Technology Assistance Projects

District of Columbia

University Legal Services AT Program for the District of Columbia

University Legal Services

220 I Street Northeast, Suite 130

Washington, DC 20002

atpdc@uls-dc.com

http://www.atpdc.org

Principal Investigator: Alicia C. Johns, 202/547-0198, ext. 134

Public Contact: Information Specialist, 202/547-0198 (V); 202/547-2657 (TTY); Fax: 202/547-2662

Project Number: H224A30001

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $500,000; FY 94 $550,180; FY 95 $565,000; FY 96 $523,015; FY 97

$557,503; FY 98 $632,503; FY 99 $616,143; FY 00 $616,143; FY 01 $462,107; FY 02 $308,072

Abstract: This project’s activities are designed to empower individuals with disabilities; to promote

consumer involvement and advocacy; and provide information, referral, and training as they relate to

accessing assistive technology services and devices; and to identify and improve access to funding

resources. Activities focus on increasing access to AT devices and services for school age children,

public awareness, and demonstrations targeting people who are underserved. The program collaborates

with public and private entities, conducts advocacy training specifically for consumers with disabilities,

and implements systems change activities that increase access to, provision of, and funding for AT

devices and services on a permanent basis. This project operates a Resource Center, a reduced-interest

AT financial loan program, and a short-term AT equipment lending program.
9-30 State Technology Assistance Projects

State Technology Assistance Projects

Florida

Florida Alliance for Assistive Service and Technology (FAAST), Inc.

FAAST, Inc.

1020 East Lafayette Street, Suite 110

Tallahassee, FL 32301-4546

faast@faast.org

http://faast.org

Principal Investigator: Terry Ward, PhD

Public Contact: Ben Greve, Program Manager, 800/322-7881 (V/TTY, in state, information and

referral only); 850/487-3278 (V/TTY); 850/487-2850 (TTY/Fax); Fax: 850/487-2805

Project Number: H224A000001

Start Date: July 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $550,000; FY 93 $995,000 (includes carryover funding); FY 94 $730,000;

FY 95 $700,000; FY 96 $647,983; FY 97 $685,983; FY 98 $922,107; FY 99 $902,700; FY 00

$675,509; FY 01 $450,340; FY 02 $450,340

Abstract: FAAST, designed by and for consumers in Florida, provides comprehensive consumer

outreach, awareness, and services. Its consumer-directed board is composed of 51-percent people with

disabilities or family members of individuals with disabilities. Services are provided through four

strategically located regional centers in Tallahassee, Jacksonville, Tampa, and Miami. FAAST’s

mission is to enhance the quality of life for all Floridians with disabilities by promoting access to,

awareness of, and advocacy for AT. Through a seamless supportive network between Florida business

and government, FAAST provides AT products and services that enable people with disabilities to

participate fully in independent living, education, work, and recreation.
State Technology Assistance Projects 9-31

State Technology Assistance Projects

Georgia

Georgia Tools for Life

Georgia Department of Human Resources

Division of Rehabilitation Services

2 Peachtree Street Northwest, Suite 35-413

Atlanta, GA 30303-3142

toolsforlife@mindspring.com

http://www.gatfl.org

Principal Investigator: Joy Kniskern

Public Contact: Clinton Fisher, 800/497-8665 (V, in state only); 404/657-3084 (V); 404/657-3095

(TTY); Fax: 404/657-3086

Project Number: H224A10001

Start Date: September 1, 1991

NIDRR Officer: Judith Fein

NIDRR Funding: FY 91 $519,474; FY 92 $520,000; FY 93 $585,000; FY 94 $729,924; FY 95

$729,924; FY 96 $675,683; FY 97 $713,683; FY 98 $888,822; FY 99 $666,617; FY 00 $444,411; FY

01 $444,411; FY 02 $444,411

Abstract: The Georgia Tools for Life program includes training at all levels, public awareness, funding policy analysis, direct services, device lending libraries, and program evaluation. The hub of Tools

for Life is operated out of the Georgia Division of Rehabilitation Services. Tools for Life is responsible

for seven areas of coordination: (1) policy analysis and improved service delivery, (2) coordination

with consumers, (3) coordination among public and private organizations, (4) training and technical

assistance, (5) public awareness and an information and referral network, (6) advocacy, and (7) consumer-responsive program evaluation. Tools for Life also coordinates four Technology Resource

Centers, the ReBoot Recycling Service, and is helping to create the Association of Georgians with

Disabilities, a consumer association. The association includes financial services, an advocacy group, a

buying co-op, insurance options, and research and development based on member needs. It also

provides technical assistance to Touch the Future, a private, nonprofit organization collaborating with

the Tech Act initiatives in Georgia.
9-32 State Technology Assistance Projects

State Technology Assistance Projects

Guam

Guam System for Assistive Technology (GSAT)

AVP/CEDDARS/GSAT

University of Guam, UOG Station

Mangilao, GU 96923

gsat@ite.net

http://uog2.uog.edu/uap/gsat.html

Principal Investigator: Heidi E. Farra-San Nicolas, PhD, 671/735-2482 (V)

Public Contact: Michael Terlaje, 671/735-2490, ext. 3 (V); 671/735-2491 (TTY); Fax: 671/734-8378

Project Number: H224A40003

Start Date: October 1, 1994

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 94 $150,000; FY 95 $150,000; FY 96 $150,000; FY 97 $150,000; FY 98

$150,000; FY 99 $150,000; FY 00 $105,000; FY 01 $105,000; FY 02 $105,000

Abstract: This project has established a consumer-responsive, comprehensive, territory-wide program

of technology-related assistance for people with disabilities to assist in overcoming Guam’s unique

challenges, including limited local funding, lack of trained personnel, few markets and market incentives, limited information, and limited eligibility for specific federal funding. Additionally, the provision

of AT devices and services in the Pacific Basin presents many unique challenges. Small island systems,

such as Guam, have limited budgets, and a harsh tropical-island environment (salt water, high humidity, and rough terrain) that creates difficulties for equipment repair and maintenance. The remote

geographic location makes procurement, adjustments, and custom modifications to assistive technology

equipment extremely difficult and costly. The project emphasizes and supports systems change and

advocacy activities that serve to build capacity within existing programs and with people with disabilities of all ages. GSAT is administered locally by Guam University’s Center for Excellence in Developmental Disabilities Education, Research, and Service (CEDDERS).
State Technology Assistance Projects 9-33

State Technology Assistance Projects

Hawaii

Assistive Technology Resource Centers of Hawaii (ATRC)

414 Kuwili Street, Suite 104

Honolulu, HI 96817

atrc@atrc.org

http://www.atrc.org

Principal Investigator: Barbara Fischlowitz-Leong, Executive Director, 808/532- 7110

Public Contact: 800/645-3007 (V/TTY, in state only), 808/532-7110 (V/TTY); Fax: 808/532-7120

Project Number: H224A10023

Start Date: October 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding:to: FY 91 $530,926; FY 92 $530,926; FY 93 $530,926; FY 94 $660,895; FY 95

$678,000; FY 96 $627,618; FY 97 $665,618; FY 98 $754,956; FY 99 $566,217; FY 00 $377,478; FY

01 $377,478; FY 02 $377,478

Abstract: Assistive Technology Resource Centers of Hawaii (ATRC) provides information and

training on AT devices, services, and funding resources for the residents of Hawaii and also works

nationally as part of the Association of Tech Act Projects. The organization conducts presentations and

demonstrations in the community to increase AT awareness and promote self-advocacy among people

with disabilities. ATRC offers classes on basic software and AT software in the state-of-the-art Technology Center. Open lab time is available for personal computer use. ATRC operates six equipment

loan banks throughout Hawaii for individuals to try out AT devices. For eligible individuals wanting to

purchase AT devices, ATRC offers financial loans. The agency collaborates with educators, independent living specialists, employment counselors, medical professionals, and others to ensure individuals

have access to the technology they want and need. An advisory council to the organization provides

input from the prospective of consumers and service providers, and the organization collaborates with

state agency officials through its Policy Coordinating Committee, members of which are appointed by

the Governor.
9-34 State Technology Assistance Projects

State Technology Assistance Projects

Idaho

Idaho Assistive Technology Project

University of Idaho

129 West Third Street

Moscow, ID 83843-4401

rseiler@uidaho.edu

http://www.ets.uidaho.edu/idatech

Principal Investigator: Ron Seiler, Project Director

Public Contact: Susan House, Information Specialist, 800/432-8324 (V/TTY); 208/885-3559 (V/

TTY); Fax: 208/885-3628

Project Number: H224A20017

Start Date: September 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $529,436; FY 93 $676,680 (includes carryover funding); FY 94 $620,000;

FY 95 $634,246; FY 96 $587,115; FY 97 $625,115; FY 98 $719,907; FY 99 $698,479; FY 00

$539,000; FY 01 $349,240; FY 02 $349,240

Abstract: The Idaho Assistive Technology Project is managed by the Center on Disabilities and

Human Development at the University of Idaho. The project engages in systems change activities,

training, materials development, information dissemination, and advocacy activities directed at increasing the availability of assistive devices and services to Idahoans who have disabilities. A customer

board directs the overall activities of the project and engages in a process of barrier identification and

elimination. Major project components include training for consumers and service providers about AT,

funding and loan programs for AT, advocacy, direct service provision through five regional resource

centers, and systems change that addresses policy, practice, and legislation.
State Technology Assistance Projects 9-35

State Technology Assistance Projects

Illinois

Illinois Assistive Technology Project (IATP)

IATP

1 West Old State Capitol Plaza, Suite 100

Springfield, IL 62701

iatp@iltech.org

http://www.iltech.org

Principal Investigator: Wilhelmina Gunther

Public Contact: Sherry Edwards, 800/852-5110 (V/TTY, in state only); 217/522- 7985 (V/TTY);

217/522-9966 (TTY); Fax: 217/522-8067

Project Number: H224A90038

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $515,300; FY 90 $517,619; FY 91 $617,619; FY 92 $620,000; FY 93

$750,000; FY 94 $923,271; FY 95 $923,271; FY 96 $833,121; FY 97 $640,997; FY 98 $427,332; FY

99 $647,332; FY 00 $427,332; FY 01 $427,332; FY 02 $427,332

Abstract: This project’s activities and objectives include information and referral services highlighting

available technology and services, comprehensive advocacy training for people with disabilities and

their families, and opportunities to explore AT options in the demonstration center. The project has

statewide consumer involvement. Consumers have input into all facets of the project’s operation, from

establishing goals and objectives to implementing the activities.
9-36 State Technology Assistance Projects

State Technology Assistance Projects

Indiana

ATTAIN Inc. (Assistive Technology Through Action in Indiana,

Incorporated)

ATTAIN Inc.

2346 South Lynhurst Drive, Suite 507

Indianapolis, IN 46241

attain@attaininc.org

http://www.attaininc.org

Principal Investigator: Cris Fulford, Executive Director

Public Contact: Lilia Teninty, 317/486-8808 (V); 317/486-8809 (TTY); 800/528- 8246 (in-state

only); Fax: 317/486-8809

Project Number: H224A00027

Start Date: July 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $521,480; FY 91 $541,277; FY 92 $565,277; FY 93 $660,288; FY 94

$726,892; FY 95 $726,892; FY 96 $672,877; FY 97 $710,877; FY 98 $533,158; FY 99 $355,439; FY

00 $355,439; FY 01 $355,439; FY 02 $355,439

Abstract: The mission of ATTAIN, Inc. is to ensure that all people with disabilities in Indiana have

access to assistive technology. ATTAIN, Inc. provides direct service programs and promotes systems

change in the public and private sectors to promote the availability and use of assistive technologies.

Direct service programs include Empowerment and Advocacy trainings, group technology trainings,

information and referral services, assistive technology assessments, individual case advocacy and an

Equipment Exchange Network. ATTAIN, Inc. serves individuals of all ages and all disabilities.
State Technology Assistance Projects 9-37

State Technology Assistance Projects

Iowa

Iowa Program for Assistive Technology (IPAT)

Iowa University Center for Excellence in Disabilities

Center for Disabilities and Development

100 Hawkins Drive, Room S295

Iowa City, IA 52242-1011

infotech@uiowa.edu

http://www.uiowa.edu/infotech

Principal Investigator: Jane Gay, RN, 319/356-4463

Public Contact: Ann Dudler, 800/331-3027 (V/TTY); 319/356-4463 (V); 877/686-0032 (TTY); Fax:

319/356-8284

Project Number: H224A00028

Start Date: April 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $557,322; FY 91 $594,287; FY 92 $595,289; FY 93 $700,314; FY 94

$735,000; FY 95 $735,000; FY 96 $680,382; FY 97 $718,382; FY 98 $538,787; FY 99 $359,191; FY

00 $359,191; FY 01 $359,191; FY 02 359,191

Abstract: This project conducts awareness and training programs and collaborates with other systemschange efforts. The information and referral portion of the Iowa program, InfoTech, provides information on new and used adaptive equipment, funding information, and a newsletter. The goals and

objectives of the Iowa Program are developed and implemented through an extensive process that

involves consumers, advocacy organizations, private and public service providers, regional and state

agencies, third-party payers, and entities not traditionally associated with AT services.
9-38 State Technology Assistance Projects

State Technology Assistance Projects

Kansas

Assistive Technology for Kansans Project

University of Kansas

Life Span Institute

2601 Gabriel Avenue

P.O. Box 738

Parsons, KS 67357

ssack@ku.edu

http://atk.ku.edu

Principal Investigator: Charles R. Spellman, EdD; Sara H. Sack, PhD

Public Contact: 800/526-3648 (800/KAN DO IT, in state only); 316/421-8367 (V/TTY); Fax: 316/

421-0954 (Fax/TTY)

Project Number: H224A30013

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 93 $515,000; FY 94 $529,999; FY 95 $550,000; FY 96 $513,758; FY 97

$551,758; FY 98 $665,404; FY 99 $643,976; FY 00 $643,876; FY 01 $483,077; FY 02 $362,216

Other funding: FY 93 $89,029 (Kansas Rehabilitation Services); FY 95 $395,000 (KRS); FY 96

$780,000 (KRS); FY 01 $61,906 (KRS); FY 02 $375,000 (KRS), $28,000 (Kansas Department of

Health & Environment)

Abstract: Through consumer involvement and leadership by the Kansas University Program at

Parsons, this project engages in activities that are designed to result in laws, regulations, policies,

practices, or organizational structures that promote consumer-responsive programs that increase access

to assistive technology devices and services. Through subcontracts with organizations across the state,

the project operates five Regional Assistive Technology Access Sites, provides a toll-free number that

connects callers directly to the appropriate Regional Access Site, manages an Interagency Equipment

Loan System, and leads a policy analysis and legislative alert effort.
State Technology Assistance Projects 9-39

State Technology Assistance Projects

Kentucky

Kentucky Assistive Technology Service (KATS) Network

KATS Network Coordinating Center

8412 Westport Road

Louisville, KY 40242

katsnet@iglou.com

http://www.katsnet.org

Principal Investigator: J. Chase Forrester, JD, Project Director

Public Contact: Ronji Dearborn, 800/327-5287 (V/TTY, in state only); 502/327- 0022 (V/TTY);

502/327-9855 (TTY); Fax: 502/327-9974

Project Number: H224A90002

Start Date: October 1, 1989

NIDRR Officer: Judith Fein

NIDRR Funding: FY 89 $535,102; FY 90 $537,510; FY 91 $577,102; FY 92 $680,000; FY 93

$710,108; FY 94 $800,000; FY 95 $800,000; FY 96 $740,552; FY 97 $555,414; FY 98 $370,276; FY

99 $370,276; FY 00 $370,276; FY 01 $370,276; FY 02 $370,276

Abstract: This project is a statewide network of organizations and individuals connecting to create a

consumer-driven, collaborative system to make assistive technology information, devices, and services

easily obtainable for people of any age or disability. In addition to its primary role in the development

and coordination of activities among state agencies and organizations that facilitate access to, provision

of, and funding for AT devices and services, the Coordinating Center staff conducts information and

referral services and disseminates information. Associated organizations provide training activities,

assessments and evaluations, consultations on appropriate technologies, technical assistance, operate an

equipment recycling and lending program and implement a low interest loan program. Consumers

represent a majority of the advisory board membership.
9-40 State Technology Assistance Projects

State Technology Assistance Projects

Louisiana

Louisiana Assistive Technology Access Network (LATAN)

LATAN

P.O. Box 14115

Baton Rouge, LA 70898-4115

cpourciau@latan.org

http://www.latan.org

Principal Investigator: Julie M. Nesbit

Public Contact: Clara Pourciau, 800/270-6185 (V/TTY); 225/925-9500 (V/TTY); Fax: 225/925-

9560

Project Number: H224A10028

Start Date: September 1, 1991

NIDRR Officer: Judith Fein

NIDRR Funding: FY 91 $502,566; FY 92 $505,398; FY 93 $555,398; FY 94 $631,095; FY 95

$660,000; FY 96 $610,955; FY 97 $648,955; FY 98 $791,475; FY 99 $593,606; FY 00 $395,738; FY

01 $395,738; FY 02 $395,738

Other funding: $1,500,000 (Title III, AT Act)

Abstract: Louisiana Assistive Technology Access Network (LATAN) is an advocacy and systems

change project whose mission is to ensure that Louisiana citizens of all ages with functional limitations

who want AT have what they need and are able to use it. Major program initiatives include: (1) consumer involvement, empowerment, and training; (2) advocacy and systems change; (3) outreach; (4)

interagency coordination; and (5) provider training. Area programs provide the opportunity for

LATAN to reach rural and inner-city areas, where a majority of ethnic minorities and elderly reside.

The project provides information about aids that enable an individual to live at home, work, learn, and

recreate. It also provides information about the services needed to acquire and use these assistive

devices. Members of the project staff provide training that empowers individuals to self-advocate

successfully for the aids they need. LATAN also advocates for increased access to assistive technology

through public and private agencies and entities. Training is provided to increase the skills of case

managers, personal service assistants, rehabilitation counselors, educators, therapists, and other providers and support personnel to recognize the benefits and uses of, and the need for, various types of AT

devices and services. A consumer-majority board directs LATAN.
State Technology Assistance Projects 9-41

State Technology Assistance Projects

Maine

Maine Consumer Information and Technology Training Exchange

(Maine CITE)

Maine CITE Coordinating Center

46 University Drive

Augusta, ME 04330

kpowers@maine.edu

http://www.mainecite.org

Principal Investigator: David Noble Stockford, 207/624-6650 (V); 207/624-6800 (TTY)

Public Contact: Kathleen Powers, Project Director, 207/621-3195 (V); 207/621- 3482 (TTY); Fax:

207/621-3193

Project Number: H224A90047

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $541,876; FY 90 $544,315; FY 91 $594,315; FY 92 $650,000; FY 93

$750,000; FY 94 $845,000; FY 95 $845,000; FY 96 $782,000; FY 97 $586,656; FY 98 $391,104; FY

99 $391,104; FY 00 $391,104; FY 01 $391,104; FY 02 $391,104

Abstract: This project collaborates with various Maine organizations, including centers for independent living, parent training agencies, and nonprofit community programs, to build a statewide network

of information and resources on AT. Project goals are: to promote broader understanding of the benefits and wider availability of AT; to educate people with disabilities, their families, professionals, and

general public in purchasing and using AT; to promote self-advocacy among people with disabilities to

shape public policy that promotes assistive technology and universal design; and to assist public and

private institutions, organizations, and associations in providing the knowledge, skills, and competencies related to AT and universal design to their constituents.
9-42 State Technology Assistance Projects

State Technology Assistance Projects

Maryland

Maryland Technology Assistance Program (MD TAP)

Maryland Governor’s Office for Individuals with Disabilities

2301 Argonne Drive, Room T17

Baltimore, MD 21218

rasinski@charm.net

http://www.mdtap.org

Principal Investigator: Paul Rasinski, Project Director

Public Contact: Patrick McCurdy, 800/832-4827 (800/TECH TAP, V/TTY); 410/554- 9230 (V/

TTY); Fax: 410/554-9237

Project Number: H224A90019

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $500,000; FY 90 $502,250; FY 91 $502,250; FY 92 $671,029; FY 93

$770,000; FY 94 $825,000; FY 95 $825,000; FY 96 $763,694; FY 97 $572,771; FY 98 $381,000; FY

99 $381,847; FY 00 $381,847; FY 01 $381,847; FY 02 $381,847

Abstract: The Maryland Technology Assistance Program (MD TAP) is a part of the Governor’s

Office for Individuals with Disabilities serving individuals of all ages and disabilities. Activities of this

program include conducting a public awareness campaign with a toll-free phone number, maintaining

lending libraries of information and AT devices, and equipment demonstration centers. The program

administers a loan guarantee project, that makes possible low-interest loans for AT to individuals with

disabilities. The program grants funds to private organizations to provide regional coverage of the state

in relation to AT issues.
State Technology Assistance Projects 9-43

State Technology Assistance Projects

Massachusetts

Massachusetts Assistive Technology Partnership

Children’s Hospital

1295 Boylston Street, Suite 310

Boston, MA 02215

matp@matp.org

http://www.matp.org

Principal Investigator: Marylyn Howe, Project Director, 617/355-7167 (TTY)

Public Contact: Patricia Hill, 800/848-8867 (V/TTY, in state only); 617/355-7153 (V); 617/355-7301

(TTY); Fax: 617/355-6345

Project Number: H224A00036

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $563,998; FY 91 $593,993; FY 92 $624,062; FY 93 $725,764; FY 94

$811,962; FY 95 $811,962; FY 96 $751,592; FY 97 $789,592; FY 98 $592,194; FY 99 $592,194; FY

00 $394,796; FY 01 $394,796; FY 02 $394,796

Abstract: The Massachusetts Assistive Technology Partnership (MATP) is a consumer-responsive,

cross-disability, multicultural, statewide project that conducts activities to increase access to AT for

people with disabilities. Activities include public awareness, information services, training and technical assistance, funding and policy analysis, advocacy, and related work to improve services and promote involvement of people with disabilities in AT. Through regional Peer Assistive Technology

Programs, MATP provides information and referral, peer networking, training, and individual and

systems advocacy. The MATP works closely with people with disabilities, family members, providers,

and state agencies to identify needs and pursue change in the AT service- delivery system. The project

publishes an AT newsletter, pursues remedies of funding and policy barriers, provides training on a

range of AT available and resources for obtaining assistive technology, pursues improvement of

equipment standards, promotes increased availability of services, promotes increased involvement of

people with disabilities in AT services and policy making, and coordinates with related projects in

Massachusetts, regionally, and nationally.
9-44 State Technology Assistance Projects

State Technology Assistance Projects

Michigan

Michigan’s Assistive Technology Project

Michigan Disability Rights Coalition

740 West Lake Lansing Road, Suite 400

East Lansing, MI 48823

http://www.copower.org

Principal Investigator: Sheryl Avery-Meints, Project Director, 517/373-3390

Public Contact: Kathryn Wyeth, 800/760-4600 (V/TTY, in state only); 517/333-2477 (V/TTY); Fax:

517/333-2677

Project Number: H224A50009

Start Date: September 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $550,000; FY 93 $885,881 (includes carryover funding); FY 94 $610,000;

FY 95 $850,000; FY 96 $786,837; FY 97 $824,837; FY 98 $1,033,953; FY 99 $1,012,525; FY 00

$759,394; FY 01 $506,263; FY 02 $506,263

Abstract: Michigan’s AT Project focuses on building the capacity of community-based, local organizations to advocate for the use of AT as a tool for inclusion in all aspects of life. Currently, Michigan’s

AT Project has projects around the state that are creating genuine systems change on a local basis. The

AT Project also supports a Web-based system of AT resources and communication networks.
State Technology Assistance Projects 9-45

State Technology Assistance Projects

Minnesota

Minnesota System of Technology to Achieve Results (STAR) Program

State of Minnesota Department of Administration

300 Centennial Building

658 Cedar Street

St. Paul, MN 55155

star.program@state.mn.us

http://www.admin.state.mn.us/assistivetechnology

Principal Investigator: Mary Brogdon, 651/297-7516

Public Contact: 800/657-3862 (V, in state only); 800/657-3895 (TTY, in state only); 651/296-7516

(V); 651/296-9478 (TTY); Fax: 651/282-6671

Project Number: H224A90041

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $500,000; FY 90 $502,250; FY 91 $567,250; FY 92 $700,000; FY 93

$750,000; FY 94 $820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $694,268; FY 98 $569,300; FY

99 $379,500; FY 00 $379,500; FY 01 $379,533; FY 02 $379,533

Abstract: This project: (1) provides a toll-free information service for residents of Minnesota; (2)

distributes brochures and other literature; (3) hosts workshops and forums; (4) provides opportunities

for consumer involvement; and (5) assists individuals seeking funding. STAR advocates for policy,

practice, and legislative change regarding access to AT; contracts for mobile outreach projects and legal

advocacy services; and provides grants on a regional basis.
9-46 State Technology Assistance Projects

State Technology Assistance Projects

Mississippi

Mississippi Project START (Success Through Assistive/Rehabilitative

Technology)

Mississippi Department of Rehabilitation Services

P.O. Box 1698

Jackson, MS 39215-1000

contactus@msprojectstart.org

http://www.msprojectstart.org

Principal Investigator: Stephen Power, Project Director

Public Contact: Eugenie Bradshaw, 800/852-8328 (V/TTY, in state only); 601/987- 4872 (V/TTY);

Fax: 601/364-2349

Project Number: H224A00032

Start Date: May 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $521,285; FY 91 $530,000; FY 92 $554,000; FY 93 $594,714; FY 94

$619,430; FY 95 $619,430; FY 96 $573,400; FY 97 $611,400; FY 98 $458,550; FY 99 $305,700; FY

00 $305,700; FY 01 $305,700; FY 02 $305,700

Abstract: Project START is a multifaceted, collaborative effort. The primary components include: (1)

an advisory council that allows for consumer input and the involvement of other relevant agencies,

organizations, and groups; (2) an information clearinghouse that provides people with disabilities, their

families, service providers, and other interested parties with information regarding available AT devices

and services; (3) a training program that ensures that service provider personnel, people with disabilities, and other relevant parties are familiar with the utility and potential of AT devices; (4) a model

service-delivery system that acts as a referral source and concurrent technical resource to existing AT

providers, and provides AT services to people with disabilities ineligible for existing programs; and (5)

an equipment loan program that makes assistive devices available to people with disabilities for trial

periods, for use while their personal equipment is being repaired or replaced, and to service providers

for training and demonstration purposes.
State Technology Assistance Projects 9-47

State Technology Assistance Projects

Missouri

Missouri Assistive Technology Project

Missouri Department of Labor and Industrial Relations

Governor’s Council on Disability

4731 South Cochise, Suite 114

Independence, MO 64055-6975

matpmo@swbell.net

http://www.dolir.state.mo.us/matp

Principal Investigator: Diane Golden, PhD, Project Director

Public Contact: 800/647-8557 (V, in state only); 800/647-8558 (TTY, in state only); 816/373-5193

(V); 816/373-9315 (TTY); Fax: 816/373-9314

Project Number: H224A30015

Start Date: September 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $524,488; FY 92 $526,988; FY 93 $550,801; FY 94 $667,121; FY 95

$675,000; FY 96 $689,639; FY 97 $727,639; FY 98 $878,221; FY 99 $658,666; FY 00 $439,111; FY

01 $439,111; FY 02 $439,111

Abstract: The primary components of this project include: (1) a statewide advisory council established

to provide input from consumers and relevant state agencies; (2) legislative and policy initiatives

including an equipment loan program, an equipment distribution program that provides both adaptive

telephone equipment and adaptive computer equipment, a no-interest or low-interest loan program to

purchase AT, a funding program to provide AT to children to age 21, health care coverage for mandatory infant hearing screenings and initial amplification devices, Medicaid coverage of augmentative

communication devices for adults, an AT lemon law, sales tax exemptions on AT, managed care

reform, and accessible state IT; (3) an information and referral service; (4) individual advocacy services; and (5) a statewide AT conference.
9-48 State Technology Assistance Projects

State Technology Assistance Projects

Montana

MonTECH

University of Montana

The Rural Institute

634 Eddy Avenue

Missoula, MT 59812

montech@selway.umt.edu

http://ruralinstitute.umt.edu/HDC/montech.htm

Principal Investigator: Gail McGregor, Project Director

Public Contact: 800/732-0323 (V/TTY); 406/243-5676 (V/TTY); Fax: 406/243-4730

Project Number: H224A10002

Start Date: September 30, 1991

NIDRR Officer: Judith Fein

NIDRR Funding: FY 91 $550,553; FY 92 $550,553; FY 93 $590,553; FY 94 $675,258; FY 95

$673,058; FY 96 $624,080; FY 97 $663,080; FY 98 $752,408; FY 99 $564,306; FY 00 $376,204; FY

01 $376,204; FY 02 $376,204

Abstract: This project develops a comprehensive statewide system of technology-related assistance to

ensure that all Montanans with disabilities have equitable access to the AT devices and services they

need. Emphasis is on eliminating barriers to obtaining AT, enacting policy change, improving awareness, strengthening consumer and provider networks, and increasing access to funding. The Montana

Consortium for Assistive Technology (MCAT) serves as the program advisory board and offers

opportunities for consumer participation. Activities currently underway include: (1) a comprehensive

equipment demonstration and evaluation center offering hands-on experience with devices to both

consumers and service providers; (2) an AT loan/lease clearinghouse; (3) an information and assistance

service that includes maintenance of a comprehensive database of Montana service programs; (4)

focused outreach activities with the state’s largest minority group, Native Americans; and (5) an

Internet Web site. Other activities include a low-interest financial loan program for consumers who do

not qualify for other funding sources, and specialized training programs to increase the skills of professionals providing AT services.
State Technology Assistance Projects 9-49

State Technology Assistance Projects

Nebraska

Nebraska Assistive Technology Partnership

Nebraska Department of Education

Vocational Rehabilitation

5143 South 48th Street, Suite C

Lincoln, NE 68516-2204

atp@atp.state.ne.us

http://www.nde.state.ne.us/ATP/

Principal Investigator: Mark Schultz, Project Director

Public Contact: Kathryn Kruse, 888/806-6287 (V/TTY, in state only); 402/471-0734 (V/TTY); 402/

471-0735 (V/TTY); Fax: 402/471-6052

Project Number: H224A90040

Start Date: October 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $523,000; FY 90 $525,352; FY 91 $570,352; FY 92 $730,000; FY 93

$766,984; FY 94 $820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $569,300; FY 98 $379,533; FY

99 $379,533; FY 00 $379,533; FY 01 $379,533; FY 02 $379,533

Abstract: The Partnership provides statewide AT and home modification services for Nebraskans of

all ages and disabilities. The Partnership is a collaboration of private, nonprofit, and governmental

organizations and agencies working together to create a seamless, comprehensive, statewide AT

program. Collaborators include Nebraska’s departments of Education, Health and Human Services,

Developmental Disabilities, Economic Development, and Vocational Rehabilitation. The collaboration

has resulted in funding for services to help meet the diverse needs of consumers regarding education,

employment, housing, and independent living. These services include assessment, evaluation, fabrication, repair, maintenance, and training. Cost savings have also resulted due to equipment recycling,

identification of appropriate equipment, and cost sharing between partnering agencies. In addition, the

Partnership helps to support Demonstration Centers, utilizes a Peer Support Network, and sponsors

special events, including Technology Expos. Training materials have been developed for educators (3

hour instructional unit and special education technical manual), health care professionals, and insurance reviewers.
9-50 State Technology Assistance Projects

State Technology Assistance Projects

Nevada

Nevada Assistive Technology Collaborative

Nevada Rehabilitation Division

Community-Based Services

711 South Stewart Street

Carson City, NV 89710

pgowins@govmail.state.nv.us

http://detr.state.nv.us/rehab/reh_pgbs.htm

Principal Investigator: Donny Loux

Public Contact: Paul Haugen, 888/337-3839 (V, in state only); 775/687-4452 (V); 775/687-3388

(TTY); Fax: 775/687-3292

Project Number: H224A00037

Start Date: July 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $560,884; FY 91 $580,047; FY 92 $594,368; FY 93 $624,588; FY 94

$675,046; FY 95 $675,046; FY 96 $624,883; FY 97 $662,883; FY 98 $497,162; FY 99 $331,442; FY

00 $331,442; FY 01 $331,442; FY 02 $331,442

Abstract: The Nevada Project is accomplishing 15 major goals in systems change that have been

established in response to identified needs in consultation with the state’s consumer-directed executive

board. Additionally, the project trains 400 consumers in the use of technology; a minimum of 1,800

consumers in self-advocacy skills; 550 families in applying technology to the needs of a family member with a disability; and a minimum of 5,730 cross-disciplinary university undergraduates in the fields

of medicine, health, education, rehabilitation, gerontology, engineering, speech pathology and audiology, and counseling in AT and cultural awareness. The project provides information and referral and

other awareness services to a minimum of 10,000 consumers over the life of the project and evaluates

the impact of those services through follow-up and satisfaction surveys.
State Technology Assistance Projects 9-51

State Technology Assistance Projects

New Hampshire

New Hampshire Technology Partnership Project

University of New Hampshire Technology Partnership

Institute on Disability/UCE

The Concord Center

Ten Ferry Street #14

Concord, NH 03301-5019

sonke.dornblut@unh.edu

http://iod.unh.edu/projects/technology_policy.html

Principal Investigator: Jan Nisbet, PhD; Terese Wilkomm, PhD, 603/862-4320 (V/TTY)

Public Contact: Sönke Dornblut, 800-238-2048 (V/TTY, in state only); 603/224- 0630 (V/TTY);

Fax: 603/228-3270

Project Number: H224A10015

Start Date: September 1, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $506,307; FY 92 $505,008; FY 93 $550,008; FY 94 $635,000; FY 95

$635,000; FY 96 $587,813; FY 97 $625,813; FY 98 $717,815; FY 99 $538,361; FY 00 $358,908; FY

01 $358,908; FY 02 $358,908

Abstract: The goal of this project is to increase access to assistive technology through the creation and

support of consumer-driven systems for the provision of state-of-the-art assistive technology products

and services for citizens with disabilities in the state of New Hampshire. The project’s lead agency is

the Institute on Disability, a University Center of Excellence at the University of New Hampshire.

Additional subcontracts have been awarded to ATECH Services and Granite State Independent

Living.
9-52 State Technology Assistance Projects

State Technology Assistance Projects

New Jersey

New Jersey Assistive Technology Advocacy Center (ATAC)

New Jersey Protection and Advocacy, Inc.

210 South Broad Street, Third Floor

Trenton, NJ 08608

advoca@njpanda.org

http://www.njpanda.org/atac

Principal Investigator: Ellen Lence, Project Director

Public Contact: 800/342-5832 (V, in state only); 609/633-7106 (TTY); 609/292- 9742 (NJ P&A

Intake Unit); Fax: 609/777-0187

Project Number: H224A20007

Start Date: September 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $548,050; FY 93 $670,528 (includes carryover funding); FY 94 $548,050;

FY 95 $550,000; FY 96 $509,130; FY 97 $547,130; FY 98 $710,380; FY 99 $688,800; FY 00

$516,714; FY 01 $344,476; FY 02 $344,476

Abstract: ATAC is a consumer-driven program whose mission is to increase awareness of and improve access to AT for all people with disabilities in the state. The project provides information and

referral through its 800 telephone number and Web site regarding all aspects of AT. ATAC also provides advocacy services, both legal and nonlegal, addressing both individual and systems issues. In

addition, project staff members provide training and technical assistance, as well as outreach regarding

the benefits of and funding for AT devices and services. ATAC disseminates brochures, funding

guides, and informational bulletins.
State Technology Assistance Projects 9-53

State Technology Assistance Projects

New Mexico

New Mexico Technology Assistance Program (NMTAP)

New Mexico State Department of Education

Division of Vocational Rehabilitation

435 Saint Michaels Drive, Building D

Santa Fe, NM 87505

awinnegar@state.nm.us

http://www.nmtap.com

Principal Investigator: Alan Klaus, Project Director, 505/954-8521

Public Contact: Caroll Cadena, 800/866-2253 (V/TTY); 800/659-4915 (TTY); 505/954-8533 (V/

TTY); Fax: 505/954-8562

Project Number: H224A00017

Start Date: April 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $500,500; FY 91 $515,500; FY 92 $525,000; FY 93 $660,710; FY 94

$750,000; FY 95 $750,000; FY 96 $694,000; FY 97 $732,268; FY 98 $549,201; FY 99 $366,134; FY

00 $366,134; FY 01 $366,134; FY 02 $366,134

Abstract: NMTAP examines and works to eliminate barriers to obtaining assistive technology in New

Mexico. The project has established a statewide program for coordinating AT services; the program is

designed to assist people with disabilities to locate, secure, and maintain AT that can increase, maintain, or improve functional capabilities of people with disabilities. This program is a resource both for

people requiring assistive technology and those that manufacture and provide AT devices or services.

The program focuses on permanently eliminating barriers in three major areas: access to, availability

of, and funding for AT with programs that include low cost financial loans and AT short-term loans to

individuals with disabilities..
9-54 State Technology Assistance Projects

State Technology Assistance Projects

New York

New York State Technology-Related Assistance of Individuals with

Disabilities (TRAID) Project

New York State Office of Advocate for Persons with Disabilities

One Empire State Plaza, Suite 1001

Albany, NY 12223-1150

traid@oapwd.org

http://www.advoc4disabled.state.ny.us/TRAID_Project/technlog.htm

Principal Investigator: Lisa Rosano-Kazckowski, Project Manager

Public Contact: 800/522-4369 (V/TTY/Spanish, in state only); 518/474-2825 (V); 518/473-4231

(TTY); Fax: 518/473-6005

Project Number: H224A00041

Start Date: October 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $500,000; FY 91 $600,000; FY 92 $615,000; FY 93 $820,961; FY 94

$950,000; FY 95 $950,000; FY 96 $879,406; FY 97 $917,406; FY 98 $688,054; FY 99 $458,703; FY

00 $458,703; FY 01 $458,703; FY 02 $458,703

Abstract: The Technology-Related Assistance of Individuals with Disabilities (TRAID) Project has

been established to improve access to AT through consumer- responsive interventions to effect systemic change on a policy, regulatory, and legislative level. Project staff members chair and facilitate the

workings of the NYS Interagency Partnership on Assistive Technology, a group designed to collaborate with a consumer-majority advisory board to identify systemic barriers to AT devices and services

and collaborate on strategies to address the barriers. In collaboration with the NYS Department of

Health, Early Intervention Program, and Verizon, the local telecommunications corporation, the

TRAID Project administers 12 Regional TRAID Centers that operate device demonstration and loan

services, coordinate local information and referral, and support individualized self-advocacy. The

TRAID Project also provides information and referral regarding assistive technology, provides training

and public awareness, and administers the TRAID-IN Equipment Exchange service.
State Technology Assistance Projects 9-55

State Technology Assistance Projects

North Carolina

North Carolina Assistive Technology Project

North Carolina Department of Health and Human Services

Division of Vocational Rehabilitation Services

1110 Navaho Drive, Suite 101

Raleigh, NC 27609-7322

rhiatt@ncatp.org

http://www.ncatp.org

Principal Investigator: Ricki Hiatt, Project Director

Public Contact: 919/850-2787 (V/TTY); Fax: 919/850-2792

Project Number: H224A00010

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $566,425; FY 91 $595,441; FY 92 $625,843; FY 93 $730,152; FY 94

$820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $797,066; FY 98 $597,800; FY 99 $398,533; FY

00 $398,533; FY 01 $398,533; FY 02 $389,533

Abstract: This project provides information and referral services, technical assistance, and training

seminars and materials. It supports five regional demonstration centers that provide demonstration and

trial of devices. The project’s central office in Raleigh coordinates systems change and advocacy,

policy, and funding issues statewide. The North Carolina Division of Vocational Rehabilitation Services provides the project with internal management systems, agency resources, and fiscal management.
9-56 State Technology Assistance Projects

State Technology Assistance Projects

North Dakota

North Dakota Interagency Program for Assistive Technology (IPAT)

North Dakota Department of Human Services

Office of Vocational Rehabilitation

P.O. Box 743

Cavalier, ND 58220

jlee@polarcom.com

http://www.ndipat.org

Principal Investigator: Judith A. Lee, Project Director

Public Contact: 800/265-4728 (V/TTY); 701/265-4807 (V/TTY); Fax: 701/265-3150

Project Number: H224A30003

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 93 $500,000; FY 94 $540,000; FY 95 $540,000; FY 96 $509,130; FY 97

$547,130; FY 98 $633,103; FY 99 $611,000; FY 00 $611,000; FY 01 $458,756; FY 02 $305,500

Abstract: The Interagency Program for Assistive Technology is dedicated to supporting the AT needs

of all people with disabilities in North Dakota, including those individuals experiencing the effects of

aging. The vision of this project is increased access to AT devices and services for the citizens of North

Dakota. This goal is realized through: (1) interagency coordination that develops and promotes policies

that improve access to AT devices and services for individuals with disabilities of all ages; (2) a public

awareness program designed to provide information to targeted individuals relating to the availability

and benefits of AT devices and services; (3) technical assistance and training that provides support to

public and private entities to increase consumer access to appropriate assessments, training, equipment,

and funding for AT; and (4) outreach activities to all regions of this rural and sparsely populated state,

including a focus on Native Americans and older individuals living below the poverty level, the two

population groups identified as underrepresented in North Dakota.
State Technology Assistance Projects 9-57

State Technology Assistance Projects

Northern Mariana Islands

Commonwealth of the Northern Mariana Islands (CNMI) Assistive

Technology Project: System of Technology-Related Assistance for

Individuals with Disabilities (STRAID)

CNMI Governor’s Council on Developmental Disabilities

Capitol Hill

P.O. Box 502565

Saipan, MP 96950-2565

clamkin@cnmiddcouncil.org; straid@cnmiddcouncil.org

http://www.cnmiddcouncil.org/atstraid/atflash.htm

Principal Investigator: Thomas J. Camacho, Project Director

Public Contact: Celia B. Lamkin, MD, Project Coordinator, 670/664-7000 (V); Fax: 670/664-7010

Project Number: H224A40007

Start Date: October 1, 1994

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 94 $150,000; FY 95 $150,000; FY 96 $150,000; FY 97 $150,000; FY 98

$150,000; FY 99 $105,000; FY 00 $105,000; FY 01 $105,000; FY 02 $105,000

Abstract: This project provides technology-related assistance for people with disabilities in the Commonwealth of the Northern Mariana Islands. The project focuses on the development of a locally based

system for the technology-related needs of children, youth, and adults with disabilities. The primary

objective of this project is to enhance opportunities for people with disabilities in the Commonwealth

to become independent, productive, integrated, and fully included in the community. Through increased emphasis on coordination with agencies or organizations that provide or pay for the provision

of AT devices or services, the CNMI Governor’s Council on Developmental Disabilities is building

and activating a system that responds to people with disabilities’ needs to: (1) have greater control over

their lives; (2) participate in, and contribute more fully to, activities in their home, school, work environment, and community; (3) interact to a greater extent with individuals who do not have disabilities;

and (4) benefit from opportunities that are taken for granted by individuals who do not have disabilities.
9-58 State Technology Assistance Projects

State Technology Assistance Projects

Ohio

Assistive Technology of Ohio (AT OHIO)

Ohio State University Research Foundation

J.L. Camera Center

2050 Kenny Road, 9th Floor

Columbus, OH 43221

atohio@osu.edu

http://www.atohio.org

Principal Investigator: Sheldon R. Simon, MD

Public Contact: Douglas Huntt, Executive Director, 800/784-3425 (V/TTY, in state only); 614/292-

2426 (V/TTY); 614/292-3162 (TTY); Fax: 614/292-5866

Project Number: H224A40001

Start Date: August 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $522,100; FY 93 $522,000; FY 94 $770,113; FY 95 $600,000; FY 96

$555,414; FY 97 $593,414; FY 98 $815,688; FY 99 $794,260; FY 00 $595,695; FY 01 $397,130; FY

02 $397,130

Abstract: This project administers, and advocates for, programs that promote increased availability

and affordability of assistive technology for Ohioans with disabilities. Staff members work to accomplish an increased level of education among people with disabilities and the professionals that provide

services to them regarding the role that technology can play in the lives of people with disabilities. The

project educates the public at large about how technology can be the bridge to independence for

people with disabilities in the areas of employment, education, and everyday living. A project goal is to

improve the services provided to people with disabilities by state, local and county governments,

service agencies, and public libraries. This project is a resource for people with disabilities to learn

about assistive technology and how it can help them overcome barriers in their lives. Project initiatives

include Adaptive Toy Lending Libraries for families of children with disabilities, low interest loans for

technology to people with disabilities, and a computer refurbishing and recycling program.
State Technology Assistance Projects 9-59

State Technology Assistance Projects

Oklahoma

Oklahoma ABLETech

Oklahoma State University

University Wellness Center

1514 West Hall of Fame Road

Stillwater, OK 74078-2026

mljwell@okstate.edu

http://okabletech.okstate.edu

Principal Investigator: Mac McCrory, Project Director

Public Contact: Linda Jaco, Project Manager, 800/257-1705 (V/TTY); 405/744-9864 (V); Fax: 405/

744-2487

Project Number: H224A50007

Start Date: July 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $530,000; FY 93 $668,524 (includes carryover funding); FY 94 $530,000;

FY 95 $575,000; FY 96 $532,272; FY 97 $570,272; FY 98 $695,237; FY 99 $673,809; FY 00

$505,357; FY 01 $336,905; FY 02 $336,905

Other funding: FY 92 $85,000 (Oklahoma Department of Rehabilitation Services); $64,944 (US

Department of Agriculture); FY 00 $33,000 (Southwest Center for Agricultural Health, Injury Prevention and Education-NIOSH); FY 01 $100,000 (Oklahoma Department of Rehabilitation Services)

Abstract: The purpose of Oklahoma ABLETech is to increase access to assistive technology for

people of all ages and all disabilitites through a variety of consumer- responsive systems change

activities. ABLETech provides information, referral, training, technical assistance and advocacy, and

works to improve laws and policies providing access to assistive technology.
9-60 State Technology Assistance Projects

State Technology Assistance Projects

Oregon

Oregon Technology Access for Life Needs (TALN)

Oregon Disabilities Commission

c/o Access Technologies, Inc.

3070 Lancaster Drive Northeast

Salem, OR 97305-1396

ati@orednet.org

http://www.taln.org

Principal Investigator: Laurie Brooks, Project Director

Public Contact: 800/677-7512 (V/TTY, in state only); 503/361-1201 (V/TTY); Fax: 503/370-4530

Project Number: H224A50002

Start Date: April 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $540,000; FY 91 $555,000; FY 92 $575,000; FY 93 $620,000; FY 94

$670,000; FY 95 $670,000; FY 96 $620,212; FY 97 $658,212; FY 98 $493,659; FY 99 $329,106; FY

00 $329,106; FY 01 $329,106; FY 02 $329,106

Abstract: This project uses existing resources including community colleges, medical, rehabilitation,

educational, and recreational and adaptive sports programs, the state library system, federally funded

technology projects currently in existence in Oregon, and state agencies to expand the availability of

AT in Oregon. Projects include an exhibit to increase public awareness, a toll-free number for information and referral, training programs, equipment loan banks and demonstration labs, and a database on

used equipment.
State Technology Assistance Projects 9-61

State Technology Assistance Projects

Pennsylvania

Pennsylvania’s Initiative on Assistive Technology (PIAT)

Temple University

Institute on Disabilities/UAP

1301 Cecil B. Moore Avenue, 423 Ritter Annex

Philadelphia, PA 19122

piat@astro.ocis.temple.edu

http://www.temple.edu/inst_disabilities/PIAT

Principal Investigator: Diane Bryen, PhD; Amy S. Goldman, 215/204-1356

Public Contact: Amy S. Goldman, 800/204-7428 (V); 800/750-7428 (TTY); 215/204- 5966 (V);

215/204-1356 (V/TTY); Fax: 215/204-9371

Project Number: H224A20006

Start Date: September 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $550,000; FY 93 $602,623; FY 94 $730,000; FY 95 $850,000; FY 96

$786,837; FY 97 $824,837; FY 98 $1,049,575; FY 99 $1,028,147; FY 00 $771,110; FY 01 $514,074;

FY 02 $514,074

Abstract: This project focuses on the creation of a consumer responsive system, supported by combined public and private resources, through which Pennsylvanians with disabilities (including older

Pennsylvanians) have access to the AT services and supports they need to contribute to and participate

fully in their communities. Major functional areas include public awareness, information and referral,

individual advocacy and systems change, and training. PIAT has established a network of regional

Assistive Technology Resource Centers (ATRCs). ATRCs are also a key to Pennsylvania’s Assistive

Technology Lending Library, a state funded program based on the pilot short-term equipment loan

program developed by PIAT.
9-62 State Technology Assistance Projects

State Technology Assistance Projects

Puerto Rico

Puerto Rico Assistive Technology Project

FILIUS Institute

University of Puerto Rico

Box 364984

San Juan, PR 00936-4984

pratp@pratp.net

http://www.pratp.net

Principal Investigator: Maria I. Miranda

Public Contact: 800/496-6035 (V/TTY, from the U.S.); 800/981-6033 (V/TTY, from Puerto Rico);

787/767-6035 (V); 787/764-6062 (V); 787/767-8642 (TTY); Fax: 787/754-8034

Project Number: H224A70001

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $500,000; FY 94 $545,000; FY 95 $555,000; FY 96 $513,758; FY 97

$551,758; FY 98 $692,202; FY 99 $670,774; FY 00 $670,774; FY 01 $503,081; FY 02 $335,387

Abstract: This project establishes a comprehensive, island-wide system of AT services to maximize

and enhance existing resources in Puerto Rico. This system is timely and consumer-responsive to the

needs of people with disabilities. The project’s main focus is to influence the system through collaborative efforts with public and private agencies to guarantee equal opportunity and access to AT by people

with disabilities in Puerto Rico. The Assistive Technology Program is administered by the University

of Puerto Rico, Office of the President, FILIUS Institute, Assistive Technology Institute.
State Technology Assistance Projects 9-63

State Technology Assistance Projects

Rhode Island

Rhode Island Assistive Technology Access Partnership (ATAP)

Rhode Island Department of Human Services

Office of Rehabilitation Services

40 Fountain Street

Providence, RI 02903-1898

reginac@ors.state.ri.us

http://www.atap.state.ri.us

Principal Investigator: Raymond A. Carroll, Administrator

Public Contact: Regina Connor, Project Director, 800/752-8088 (in state only); 401/421-7005, ext.

390 (V); 401/421-7016 (TTY); Fax: 401/222-3574

Project Number: H224A30012

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 93 $500,000; FY 94 $500,000; FY 95 $500,000; FY 96 $500,000; FY 97

$538,000; FY 98 $624,467; FY 99 $603,039; FY 00 $603,039; FY 01 $452,279; FY 02 $301,520

Abstract: The Rhode Island Assistive Technology Access Partnership (ATAP) is a statewide partnership of organizations, each with a targeted focus, working together with a consumer council (Rhode

Island Council on Assistive Technology) to remove barriers and increase access to AT for individuals

with disabilities of all ages.
9-64 State Technology Assistance Projects

State Technology Assistance Projects

South Carolina

South Carolina Assistive Technology Program (SCATP)

University of South Carolina School of Medicine

Center for Disability Resources

Columbia, SC 29208

jjendron@usit.net; evelyne@cdd.sc.edu

http://www.sc.edu/scatp

Principal Investigator: Richard Ferrante, 803/935-5231 (V)

Public Contact: Evelyn Evans, Project Director, 803/935-5263 (V/TTY); Fax: 803/935-5342

Project Number: H224A60001

Start Date: October 1, 1991

NIDRR Officer: Judith Fein

NIDRR Funding: FY 91 $541,767; FY 92 $541,767; FY 93 $595,767; FY 94 $720,000; FY 95

$720,000; FY 96 $667,000; FY 97 $704,497; FY 98 $829,535; FY 99 $622,151; FY 00 $414,768; FY

01 $414,768; FY 02 $414,768

Abstract: This project is the catalyst for uniting AT services statewide into an easily accessible system

that is responsive to the needs of all South Carolinians with disabilities. SCATP collaborates with state

agencies, policy-makers, and private entities to overcome barriers that prevent people from getting the

devices and services they need for full and productive lives. Systems change activities are developed

with three audiences under consideration: state agency administrators, service providers, and consumers. Rather than direct provision of services, SCATP focuses on strengthening systems so that they are

mutually reinforcing and self-sustaining; the major funding streams of the Vocational Rehabilitation

Department, Medicaid, the Department of Education, and private insurance are targeted. Systems

change activities are connected to training and technical assistance activities that are supportive of

systems change. All activities are guided by input from and responsiveness to consumers and their

families.
State Technology Assistance Projects 9-65

State Technology Assistance Projects

South Dakota

South Dakota Assistive Technology Project (DakotaLink)

DakotaLink

1925 Plaza Boulevard

Rapid City, SD 57702

dvogel@tie.net

http://dakotalink.tie.net

Principal Investigator: Grady Kickul, 605/773-3195 (V)

Public Contact: Dave Vogel, 800/224-5336 (V/TTY, in state only); 605/224-5336 (V/TTY); Fax:

605/224-8320

Project Number: H224A20019

Start Date: July 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $520,000; FY 93 $520,000; FY 94 $620,000; FY 95 $650,000; FY 96

$601,699; FY 97 $601,699; FY 98 $728,100; FY 99 $700,000; FY 00 $525,000; FY 01 $353,336; FY

02 $353,336

Abstract: To achieve systems change, DakotaLink works with consumers, state and private agencies,

and organizations providing services to, or advocating for, people with disabilities to identify and

eliminate barriers to individuals receiving AT devices or services in a timely manner. The project uses

demonstration centers, outreach coordinators, rehabilitation technicians, and training programs as a

catalyst to: (1) reach the most underserved areas; (2) provide advocacy training for people with disabilities and their representatives; and (3) provide information support to all individuals regarding

access to, provision of, and funding for assistive technology devices and services. DakotaLink continues to use a Native American Outreach Coordinator to reach specifically that underserved population.
9-66 State Technology Assistance Projects

State Technology Assistance Projects

Tennessee

Tennessee Technology Access Project (TTAP)

TTAP

Tennessee Department of Human Services

Department of Rehabilitation Services

Citizen’s Plaza, 11th Floor

400 Deadrick Street

Nashville, TN 37248

kevin.r.wright@mail.state.tn.us

http://www.state.tn.us/humanserv/ttap_index.html

Principal Investigator: Kevin R. Wright, Project Director

Public Contact: 800/732-5059; 615/532-3122 (V/TTY); Fax: 615/532-4685

Project Number: H224A010002

Start Date: July 1, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $550,000; FY 91 $553,675; FY 92 $553,675; FY 93 $640,800; FY 94

$665,000; FY 95 $665,000; FY 96 $615,584; FY 97 $653,584; FY 01 $326,792; FY 02 $326,792

Abstract: This project’s mission is to maintain a statewide program of technology-related assistance

that is timely, comprehensive, and consumer-driven to ensure that all Tennesseans with disabilities

have the information, services, and devices they need to make choices about where and how they

spend their time as independently as possible. TTAP and its five regional assistive technology centers,

located in Jackson, Knoxville, Chattanooga, Memphis, and Nashville, work daily toward that mission

by providing public awareness, evaluation, minority outreach, and advocacy services to individuals,

families, businesses, and government.
State Technology Assistance Projects 9-67

State Technology Assistance Projects

Texas

Texas Technology Access Project

University of Texas at Austin

Texas Center for Disability Studies

4030 West Braker Lane

Building 1, Suite 180

Austin, TX 78759

johnz@utxvms.cc.utexas.edu

http://techaccess.edb.utexas.edu

Principal Investigator: Susanne Elrod, Project Director

Public Contact: John Moore, 800/828-7839 (V/TTY, in state only); 512/471-7621 (V); 512/471-1844

(TTY); Fax: 512/471-7549

Project Number: H224A20012

Start Date: August 1, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $550,000; FY 93 $550,000; FY 94 $550,000; FY 95 $850,000; FY 96

$786,837; FY 97 $824,837; FY 98 $1,167,518; FY 99 $1,146,080; FY 00 $859,566; FY 01 $573,044;

FY 02 $573,044

Abstract: This project promotes increased access to assistive and telecommunication technology

through technical assistance and training, information and public awareness activities, and coordination

with public agencies and policy makers.
9-68 State Technology Assistance Projects

State Technology Assistance Projects

U.S. Virgin Islands

U.S. Virgin Islands Technology-Related Assistance for Individuals with

Disabilities (TRAID)

University of the Virgin Islands/UAP

#2 John Brewers Bay

St. Thomas, USVI 00801-0990

yhabtey@uvi.edu

http://www.uvi.edu/pub-relations/resource.htm

Principal Investigator: Yegin Habtes

Public Contact: 340/693-1323; Fax: 340/693-1325

Project Number: H224A50005

Start Date: October 1, 1995

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 95 $150,000; FY 96 $150,000; FY 97 $150,000; FY 98 $150,000; FY 99

$105,000; FY 00 $105,000; FY 01 $105,000; FY 02 $105,000

Other funding: FY 95 $6,400

Abstract: The Virgin Islands project disseminates necessary information on assistive technologies for

people with disabilities and provides a venue for device demonstration through the establishment of

two resource centers, on the islands of St. Thomas and St. Croix. The project is also initiating an AT

loan library.
State Technology Assistance Projects 9-69

State Technology Assistance Projects

Utah

Utah Assistive Technology Program (UATP)

Utah State University

Center for Persons with Disabilities

6855 Old Main Hill

Logan, UT 84322-6855

uatp@cc.usu.edu

http://www.uatpat.org

Principal Investigator: Martin Blair, Program Director, 435/797-3886

Public Contact: 435/797-3824 (V); Fax: 435/797-2355

Project Number: H224A90051

Start Date: November 1, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $505,445; FY 90 $507,720; FY 91 $559,720; FY 92 $696,224; FY 93

$788,526; FY 94 $800,000; FY 95 $800,000; FY 96 $740,560; FY 97 $555,414; FY 98 $370,276; FY

99 $370,276; FY 00 $370,276; FY 01 $370,276; FY 02 $370,276

Abstract: The Utah Assistive Technology Program (UATP) provides expertise, resources, and a

structure to enhance and expand AT services provided by private and public agencies in Utah. This

occurs through monitoring, coordination, information dissemination, empowering individuals, the

identification and removal of barriers, and expanding state resources. Primary components of UATP

include: (1) the Utah Center for Assistive Technology, a statewide service hub; (2) Assistive Technology Access Centers located in rural centers for independent living; (3) outreach to those over the age

of 65 and their service providers; (4) the Utah Assistive Technology Foundation providing low-interest

loans to consumers; (5) the Consumer Council whose primary interest is to identify barriers; (6) the

Management and Implementation Board, made up of state service agency representatives (usually the

directors) that take appropriate action to remove barriers; and (7) consumer technical services provided

by the Assistive Technology Development and Fabrication Laboratory at Utah State University.
9-70 State Technology Assistance Projects

State Technology Assistance Projects

Vermont

Vermont Assistive Technology Project

Vermont Department of Aging and Disabilities

103 South Main Street, Weeks Building

Waterbury, VT 05671-2305

betsyr@dad.state.vt.us

http://www.dad.state.vt.us/atp

Principal Investigator: Julie Tucker, Project Director

Public Contact: 800/750-6355 (V/TTY, in state only); 802/241-2620 (V/TTY); Fax: 802/241-2174

Project Number: H224A00023

Start Date: July 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $553,048; FY 91 $560,577; FY 92 $581,417; FY 93 $705,000; FY 94

$700,000; FY 95 $700,000; FY 96 $647,983; FY 97 $685,983; FY 98 $514,487; FY 99 $342,991; FY

00 $342,992; FY 01 $342,992; FY 02 $342,992

Abstract: The Vermont Assistive Technology Project has regional centers for demonstration, trial, and

technical support for all types of assistive technology, including computer and augmentative communication equipment, as well as information and referral. The project affects change in policies and procedures of public and private agencies by providing AT expertise on boards and committees such as the

Developmental Services Communication Task Force, ADA Coalition, Telephone Equipment Distribution Program, etc. The Project advocates for visitable homes by educating consumers about Vermont’s

housing accessibility laws, which the Project was instrumental in passing. The Project supports an

annual AT institute for educators and presents many workshops in settings such as the Traumatic Brain

Injury Conference to raise awareness and institute AT knowledge and expertise into existing public

and private agencies. The Project also supports an AT Equipment Revolving Loan Fund Program

through a community credit union.
State Technology Assistance Projects 9-71

State Technology Assistance Projects

Virginia

Virginia Assistive Technology System (VATS)

Virginia Department of Rehabilitative Services (DRS)

8004 Franklin Farms Drive

P.O. Box K-300

Richmond, VA 23288-0300

knorrkh@drs.state.va.us

http://www.vats.org

Principal Investigator:d: Kenneth Knorr, Project Director

Public Contact: 800/552-5019 (V/TTY); 804/662-9990 (V/TTY); Fax: 804/662-9478

Project Number: H224A00009

Start Date: June 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $550,000; FY 91 $562,500; FY 92 $578,883; FY 93 $685,331; FY 94

$663,467; FY 95 $745,000; FY 96 $689,639; FY 97 $727,639; FY 98 $545,729; FY 99 $363,820; FY

00 $363,820; FY 01 $363,820; FY 02 $363,820

Abstract: The Virginia Assistive Technology System (VATS) provides coordination at three levels:

state policy, through the mechanism of interagency agreements; project management, through the

mechanism of the advisory council; and at the local and regional level, through four AT regional sites.

Activities include information and referral services, technical assistance, training materials and seminars, and creative grant programs and policy development. The project has produced a textbook,

Assistive Technology: A Resource for School, Work, and Community (Brookes Publishing) and a

National Study of Loan Financing Programs.
9-72 State Technology Assistance Projects

State Technology Assistance Projects

Washington

Washington Assistive Technology Alliance (WATA)

University of Washington

Center for Technology and Disability Studies (CTDS)

Box 357920

Seattle, WA 98195-7920

uwat@u.washington.edu

http://wata.org

Principal Investigator: Debbie Cook, Project Director, 360/438-8008 (V); 360/438-8644 (TTY)

Public Contact: 800/841-8345 (V/TTY, in state only); 206/685-4181 (V); 206/616- 1396 (TTY);

Fax: 206/543-4779

Project Number: H224A30006

Start Date: October 1, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $525,090; FY 94 $580,000; FY 95 $600,000; FY 96 $555,414; FY 97

$593,414; FY 98 $739,639; FY 99 $700,000; FY 00 $718,211; FY 01 $538,658; FY 02 $308,072

Abstract: Activities for this project include information, consultation, and training related to selection

of technology devices, services, and funding; legal advice and advocacy; policy development; legislative action; technical consultation and training; publications; and online resources. WATA is a consumer advocacy network that includes the University of Washington Center for Technology and

Disability Studies, the AT Resource Center at Easter Seal Society in Spokane, and the Washington

Protection and Advocacy System. The project is administered by the state Division of Vocational

Rehabilitation with guidance from the Consumer Majority Advisory Board.
State Technology Assistance Projects 9-73

State Technology Assistance Projects

West Virginia

West Virginia Assistive Technology System (WVATS)

West Virginia University Center for Excellence in Disabilities

Airport Research and Office Park

955 Hartman Run Road

Morgantown, WV 26505

jcstewart@hsc.wvu.edu

http://www.ced.wvu.edu/Programs/community/WVATS/index.htm

Principal Investigator: Janice A. Holland, 304/766-4694 (V)

Public Contact: Jack Stewart, Project Manager, 800/841-8436 (V/TTY, in state only); 304/293-4692

(V/TTY); Fax: 304/293-7294

Project Number: H224A20011

Start Date: July 1, 1992

NIDRR Officer: Judith Fein

NIDRR Funding: FY 92 $530,000; FY 93 $530,000; FY 94 $620,000; FY 95 $620,000; FY 96

$573,928; FY 97 $611,928; FY 98 $716,068; FY 99 $716,068; FY 00 $520,980; FY 01 $347,320; FY

02 $347,320

Abstract: The WVATS project seeks to improve the availability of AT by improving existing AT

services, facilitating coordination of AT service-delivery programs, identifying and remediating gaps in

services, and promoting, developing, and/or delivering new services. These systemic changes are

carried out in response to and consonant with consumer advice, direction, and consent. The West

Virginia project has a board composed primarily of consumers and their families. State organizations

and agencies provide guidance, structure, and input. WVATS uses a “core” system directed by a board,

overseen by the Division of Rehabilitation Services, and managed on a day-to- day basis by the West

Virginia University Affiliated Center for Developmental Disabilities. WVATS supports program staff,

an information and referral system with a toll-free number, two resource centers, a statewide awareness

campaign, training programs, and seven regional technology-related assistance teams.
9-74 State Technology Assistance Projects

State Technology Assistance Projects

Wisconsin

WisTech

Wisconsin Assistive Technology Program

Division of Supportive Living

1 West Wilson Street, Room 450

P.O. Box 7851

Madison, WI 53707-7851

abbeysu@dhfs.state.wi.us

http://www.wistech.state.wi.us

Principal Investigator: Susan Abbey, Project Director, 608/266-1794

Public Contact: 608/266-0421 (V/TTY); 608/267-9880 (TTY); Fax: 608/267-3203

Project Number: H224A00013

Start Date: May 1, 1990

NIDRR Officer: Judith Fein

NIDRR Funding: FY 90 $572,871; FY 91 $575,000; FY 92 $590,313; FY 93 $685,488; FY 94

$730,000; FY 95 $730,000; FY 96 $675,754; FY 97 $713,754; FY 98 $535,315; FY 99 $356,877; FY

00 $356,877; FY 01 $356,877; FY 02 $356,877

Abstract: WisTech provides direct consumer services by contracting with eight Wisconsin Centers for

Independent Living, the Wisconsin Coalition for Advocacy (a Protection and Advocacy agency), and

AgrAbility. Consumer-direct services include AT assessments, maintenance of equipment loan closets,

assistance with locating funding for AT, among other services. WisTech incorporations consumer

control and involvement by working with the WisTech Advisory Board, comprised of at least 51

percent consumers or parents, and service providers.
State Technology Assistance Projects 9-75

State Technology Assistance Projects

Wyoming

Wyoming’s New Options in Technology (WYNOT)

University of Wyoming

Wyoming Institute for Disabilities (WIND)

1465 North Fourth Street, Suite 111

Laramie, WY 82072

wynot.uw@uwyo.edu

http://wind.uwyo.edu/wynot

Principal Investigator: Keith Miller, 307/766-2762 (V)

Public Contact: Kathy Laurin, 800/861-4312 (V/TTY, in state only); 307/766-2051 (V/TTY); Fax:

307/721-2084

Project Number: H224A60002

Start Date: October 1, 1993

NIDRR Officer: Judith Fein

NIDRR Funding: FY 94 $500,000; FY 95 $500,000; FY 96 $500,000; FY 97 $500,000; FY 98

$620,502; FY 99 $599,074; FY 00 $599,074; FY 01 $449,306; FY 02 $336,979

Abstract: The mission of WYNOT is to build statewide capacity for universal access to assistive

technology for all of Wyoming and to establish a self-sustaining system that will continue to meet the

state’s need for assistive technology after Federal funding for WYNOT has ended. In pursuing this

mission, WYNOT provides training and technical assistance to statewide and community-based

organizations to enhance their capacity to meet the assistive technology needs of individuals with

disabilities. WYNOT also provides technical assistance and training for consumers. The project

operates a demonstration center, loan bank, information and referral service, and outreach services.
9-76 State Technology Assistance Projects

Directory of Protection and Advocacy for Assistive Technology

Pursuant to Title I, Section 102 of the Assistive Technology Act, each state and outlying area annually

receives a grant from NIDRR to support protection and advocacy services through the systems established to

provide protection and advocacy under the Developmental Disabilities Assistance and Bill of Rights Act, for

the purposes of assisting in the acquisition, utilization, or maintenance of assistive technology devices or

services for individuals with disabilities. Each state is awarded $50,000 annually, and the four outlying areas

each receive grants of $20,000 annually. These projects provide legal advocacy, information, and technical

assistance, and work closely with the state grants projects. A list of the state protection and advocacy

agencies and contact information for each is included below.

Source: National Association of Protection and Advocacy Systems, Inc., 202/408-9514; http://www.napas.org/

other pages/Contact P&As link page.htm or info@napas.org.

Alabama

Alabama Disabilities Advocacy Program

The University of Alabama, Box 870395

Tuscaloosa, AL 35487-0395

Phone: 205/348-4928; 205/348-9484 (TTY); 800/826-

1675 (AL only)

Fax: 205/348-3909

Email: adap@law.ua.edu

Web site: http://www.adap.net

Alaska

Disability Law Center of Alaska

3330 Arctic Blvd., Suite 103

Anchorage, AK 99503

Phone: 907/565-1002 (Voice/TTY); 800/478-1234

Fax: 907/565-1000

Email: cklinger@dlcak.org

Web site: http://www.dlcak.org

American Samoa

Client Assistance Program and Protection & Advocacy

P. O. Box 3937

Pago Pago, American Samoa 96799

Phone: 011-684/633-2441

Fax: 011-684/633-7286

Email: opad@samoatelco.com

Arizona

Arizona Center for Disability Law

100 North Stone Avenue, Suite 305

Tucson, AZ 85701

Phone: 520/327-9547 (Voice/TTY); 800/922-1447

Fax: 520/884-0992

Email: lcohen@acdl.com

Web site: http://www.acdl.com

Arkansas

CAP/PADD/PAIMI/PAIR/PABSS

Disability Rights Center, Inc.

1100 North University, Suite 201

Little Rock, AR 72207

Phone: 501/296-1775 (Voice/TTY); 800/482-1174

Fax: 501/296-1779

Email: panda@arkdisabilityrights.org

Web site: http://www.arkdisabilityrights.org

California

Protection & Advocacy, Inc.

100 Howe Avenue, Suite 185N

Sacramento, CA 95825

Phone: 916/488-9955 Admin. Off.; 916/488-9950

Legal Off.; 800/776-5746

Fax: 916/488-2635 or 916/488-9962

Email: legalmail@pai-ca.org

Web site: http://www.pai-ca.org

Colorado

The Legal Center

455 Sherman Street, Suite 130

Denver, CO 80203

Phone: 303/722-0300 (Voice/TTY); 800/288-1376

Fax: 303/722-0720

Email: tlcmail@thelegalcenter.org

Web site: http://www.thelegalcenter.org

Connecticut

Office of P&A for Persons with Disabilities

60B Weston Street

Hartford, CT 06120-1551

Phone: 860/297-4300; 860/566-2102 TDD; 800/842-

7303 (CT ONLY)
State Technology Assistance Projects 9-77

Fax: 860/566-8714

Email: james.mcgaughey@po.state.ct.us

Web site: http://www.state.ct.us/opapd

Delaware

Community Legal Aid Society, Inc.

Community Services Building, Suite 801

100 W. 10th Street

Wilmington, DE 19801

Phone: 302/575-0660 (Voice/TTY)

Fax: 302/575-0840

Email: bhartman@declasi.org

District of Columbia

University Legal Services

220 I Street, NE, Suite 130

Washington, DC 20002

Phone: 202/547-0198

Fax: 202/547-2083

Email: jbrown@uls-dc.com

Web site: http://www.dcpanda.org

Florida

Advocacy Ctr. for Persons with Disabilities

2671 Executive Center, Circle West

Webster Building, Suite 100

Tallahassee, FL 32301-5024

Phone: 850/488-9071; 800/342-0823; FL only); 800/

346-4127 (TTY)

Fax: 850/488-8640

Email: g.blumenthal@advocacycenter.org

Web site: http://www.advocacycenter.org

Georgia

Georgia Advocacy Office, Inc.

100 Crescent Centre Parkway, Suite 520

Tucker, GA 30084

Phone: 404/885-1234 (Voice/TTY); 800/537-2329

Fax: 770/414-2948

Email: info@thegao.org

Web site: http://www.thegao.org

Guam

Guam Legal Services

113 Bradley Place

Hagatna, Guam 69610

Phone: 1-671/477-9811

Fax: 011-671/477-1320

Email: glsc@netpci.com

Hawaii

Hawaii Disability Rights Center

900 Fort Street Mall, Suite 1040 Pioneer Plaza

Honolulu, HI 96813

Phone: 808/949-2922 (Voice/TTY)

Fax: 808/949-2928

Email: pahi@pixi.com

Web site: http://www.pixi.com/~pahi

Idaho

Co-Ad, Inc.

4477 Emerald, Suite B-100

Boise, ID 83706

Phone: 208/336-5353 (Voice/TTY); 800/632-5125

Fax: 208/336-5396

Email: coadinc@melodusa.net

Web site: http://users.moscow.com/co-ad

Illinois

Equip for Equality, Inc.

11 East Adams, Suite 1200

Chicago, IL 60603

Phone: 312/341-0022 (Voice/TTY); 800/537-2632

Fax: 312/341-0295

Email: contactus@equipforequality.org

Web site: http://www.equipforequality.org

Indiana

Indiana Protection and Advocacy Services

4701 N. Keystone Ave., Suite 222

Indianapolis, IN 46204

Phone: 317/722-5555 (Voice/TTY); 800/622-4845

Fax: 317/722-5564

Email: tgallagher@ipas.state.in.us

Web site:

http://www.IN.gov/ipas

Iowa

Iowa P&A Service, Inc.

3015 Merle Hay Road, Suite 6

Des Moines, IA 50310

Phone: 515/278-2502; 515/278-0571 TDD; 800/779-

2502

Fax: 515/278-0539

Email: info@ipna.org

Kansas

Kansas Advocacy & Protection Services

3745 SW Wanamaker Road

Topeka, KS 66610

Phone: 785/273-9661
9-78 State Technology Assistance Projects

Fax: 785/273-9414

Email: jim@ksadv.org

Kentucky

Office for Public Advocacy

Division for P&A

100 Fair Oaks Lane, 3rd Floor

Frankfort, KY 40601

Phone: 502/564-2967; 800/372-2988 (TTY)

Fax: 502/564-3949

Email: mafitzgerald@mail.pa.state.ky.us

Louisiana

Advocacy Center

225 Baronne, Suite 2112

New Orleans, LA 70112-2112

Phone: 504/522-2337 (Voice/TTY); 800/960-7705

Fax: 504/522-5507

Email: lsimpson@advocacyla.org

Web site: http://www.advocacyla.org

Maine

Disability Rights Center

24 Stone Street

P.O. Box 2007

Augusta, ME 04338

Phone: 207/626-2774; 800/452-1948 (TTY)

Fax: 207/621-1419

Email: advocate@drcme.org

Web site: http://www.drcme.org

Maryland

Maryland Disability Law Center

Central Maryland Office

The Walbert Building, Suite 400

1800 North Charles Street

Baltimore, MD 21201

Phone: 410/727-6352; 800/233-7221 (TTY); 410/727-

6387

Fax: 410/727-6389; 410/234-2711

Email: philf@mdlcbalto.org

Web site: http://www.mdlcbalto.org

Massachusetts

Disability Law Center, Inc.

11 Beacon Street, Suite 925

Boston, MA 02108

Phone: 617/723-8455 (Voice/TTY)

Fax: 617/723-9125

Email: cgriffin@dlc-ma.org

Web site: http://www.dlc-ma.org

Paimi

Center for Public Representation

22 Green Street

Northampton, MA 01060

Phone: 413/586-6024 (Voice/TTY)

Fax: 413/586-5711

Email: rfleischner@cpr-ma.org

Michigan

Michigan P&A Service

4095 Legacy Parkway, Suite 500

Lansing, MI 48911-4263

Phone: 517/487-1755 (Voice/TTY)

Minnesota

Minnesota Disability Law Center

430 First Avenue North, Suite 300

Minneapolis, MN 55401-1780

Phone: 612/332-1441; 800/292-4150

Fax: 612/334-5755

Email: bjursik@midmnlegal.org

Web site: http://www.mnlegalservices.org/mdlc

Mississippi

Mississippi P&A System for DD, Inc.

5305 Executive Place, Suite A

Jackson, MS 39206

Phone: 601/981-8207 (Voice/TTY)

Fax: 601/981-8313

Email: mspna@bellsouth.net

Missouri

Missouri P&A Services

925 S. Country Club Drive, Unit B-1

Jefferson City, MO 65109

Phone: 573/893-3333; 800/392-8667

Fax: 573/893-4231

Email: mopasjc@socket.net

Web site: members.socket.net/~mopasjc/

MOP&A.htm

Montana

Montana Advocacy Program

400 North Park, 2nd Floor

PO Box 1681

Helena, MT 59624

Phone: 406/449-2344 (Voice/TTY); 800/245-4743

Fax: 406/449-2418

Email: bernie@mtadv.org

Web site: http://www.mtadv.org
State Technology Assistance Projects 9-79

Native American

PADD

DNA-People’s Legal Services, Inc.

P.O. Box 392

Shiprock, NM 87240

Phone: 505/368-3216

Fax: 505/368-3220

Email: tyanan@dnalegalservices.org

Nebraska

Nebraska Advocacy Services, Inc.

134 South 13th Street, Suite 600

Lincoln, NE 68508

Phone: 402/474-3183 (Voice/TTY); 800/422-6691

Fax: 402/474-3274

Email: nas@nas-pa.org

Nevada

Nevada Advocacy & Law Center, Inc.

6039 Eldora Avenue, Ste C

Las Vegas, NV 89102

Phone: 702/257-8150; 702/257-8160 TDD; 888/349-

3843

Fax: 702/257-8170

Email: ndalc@earthlink.net (Las Vegas)

reno@ndalc.org (Reno)

Web site: http://www.ndalc.org

New Hampshire

Disabilities Rights Center

PO Box 3660

18 Low Avenue

Concord, NH 03302-3660

Phone: 603/228-0432 (Voice/TTY)

Fax: 603/225-2077

Email: advocacy@drcnh.org

New Jersey

New Jersey P&A, Inc

210 S. Broad Street, 3rd Floor

Trenton, NJ 08608

Phone: 609/292-9742; 800/922-7233

Fax: 609/777-0187

Email: advoca@njpanda.org

Web site: http://www.njpanda.org

New Mexico

Protection & Advocacy, Inc

1720 Louisiana Blvd., NE - Suite 204

Albuquerque, NM 87110

Phone: 505/256-3100 (Voice/TTY); 800/432-4682

Fax: 505/256-3184

Email: nmpanda@nmprotection-advocacy.com

Web site: http://www.nmprotection-advocacy.com

New York

NY State Commission on Quality of Care

for the Mentally Disabled

401 State Street

Schenectady, NY 12305-2397

Phone: 518/381-7098; 800/624-4143 (TTY)

Fax: 518/381-7095

Email: marcelc@cqc.state.ny.us

Web site: http://www.cqc.state.ny.us

North Carolina

Governor’s Advocacy Council for

Persons with Disabilities

2113 Cameron Street, Suite 218

Raleigh, NC 27605

Phone: 919/733-9250 (Voice/TTY); 800/821-6922

(NC only)

Fax: 919/733-9173

Email: allison.bowen@ncmail.net

Web site: http://www.doa.state.nc.us/doa/gacpd/

gacpd.htm

North Dakota

The North Dakota Protection & Advocacy Project

400 E. Broadway, Suite 616

Bismarck, ND 58501

Phone: 701/328-2950; 800/472-2670; 800/642-6694

(24 H. Line); 800/366-6888 (TTY)

Fax: 701/328-3934

Email: tlarsen@state.nd.us

Web site: http://www.ndpanda.org

N. Mariana Islands

Northern Mariana Protection and Advocacy System,

Inc.

P.O. Box 503529

Saipan, MP 96950-3529

Phone: 1-670/235-7274/3

Fax: 1-670/235-7275

Email: nmpasi@gtepacifica.net

Ohio

Ohio Legal Rights Service

8 East Long Street, 5th Floor

Columbus, OH 43215

Phone: 614/466-7264 (Voice/TTY); 800/282-9181

Fax: 614/644-1888
9-80 State Technology Assistance Projects

Email: CKnight@olrs.state.oh.us

Web site: http://www.state.oh.us/olrs/

Oklahoma

Oklahoma Disability Law Center, Inc.

2915 Classen Blvd. - Suite 300

Oklahoma City, OK 73106

Phone: 405/525-7755; 800/880-7755

Fax: 405/525-7759

Email: odlcokc@flash.net

Web site: http://www.oklahomadisabilitylaw.org

Oregon

Oregon Advocacy Center

620 SW Fifth Ave., 5th Floor

Portland, OR 97204-1428

Phone: 503/243-2081; 800/452-1694; 800/556-5351

(TTY)

Fax: 503/243-1738

Email: welcome@oradvocacy.org

Web site: http://www.oradvocacy.org

Pennsylvania

Pennsylvania P&A, Inc.

1414 N. Cameron Street, Suite C

Harrisburg, PA 17103

Phone: 717/236-8110 (Voice/TTY); 800/692-7443

Fax: 717/236-0192

Email: ppa@ppainc.org

Web site: http://www.ppainc.org

Puerto Rico

Office of the Governor/Ombudsman for Persons with

Disabilities

P. O. Box 41309

San Juan, PR 00940-1309

Phone: 787/725-2333; 787/721-4299; 800/981-4125

TTY 787/725-4014

Fax: 787/721-2455

Email: jrocasio@oppi.gobierno.pr

Web site: http://www.oppi.prstar.net

Rhode Island

Rhode Island Disability Law Center Inc.

349 Eddy Street

Providence, RI 02903

Phone: 401/831-3150; 401/831-5335TDD; 800/733-

5332

Fax: 401/274-5568

Email: hn7384@handsnet.org

South Carolina

Protection & Advocacy for People with Disabilities,

Inc.

3710 Landmark Drive, Suite 208

Columbia, SC 29204

Phone: 803/782-0639 (Voice/TTY); 866/275-7273

(SC ONLY)

Fax: 803/790-1946

Email: info@protectionandadvocacy-sc.org

Web site: http://www.protectionandadvocacy-sc.org

South Dakota

South Dakota Advocacy Services

221 South Central Avenue

Pierre, SD 57501

Phone: 605/224-8294 (Voice/TTY); 800/658-4782

Fax: 605/224-5125

Email: sdas@sdadvocacy.com

Web site: http://www.sdadvocacy.com

Tennessee

Tennessee P&A, Inc.

P O Box 121257

Nashville, TN 37212

Phone: 615/298-1080 (Voice/TTY); 800/342-1660

Fax: 615/298-2046

Email: shirleys@tpainc.org

Texas

Advocacy, Inc.

7800 Shoal Creek Blvd. - Suite 171-E

Austin, TX 78757

Phone: 512/454-4816 (Voice/TTY); 800/252-9108

Fax: 512/323-0902

Email: infoai@advocacyinc.org

Web site: http://www.advocacyinc.org

Utah

Disability Law Center

205 North 400 West

Salt Lake City, UT 84103

Phone: 801/363-1347; 800/662-9080

TTY: 801/924-3185

Fax: 801/363-1437

Email: fnelson@disabilitylawcenter.org

Web site: http://www.disabilitylawcenter.org

Vermont

Vermont Protection & Advocacy

141 Main Street - Suite 7

Montpelier, VT 05602
State Technology Assistance Projects 9-81

Phone: 802/229-1355; 800/834-7890

Fax: 802/229-1359

Email: info@vtpa.org

Web site: http://www.vtpa.org

Virgin Islands

63 Estate Cane Carlton, Frederiksted

St. Croix U.S. Virgin Islands 00840

Phone: 340/772-1200; 340/776-4303; 340/772-4641

(TTY)

Fax: 340/772-0609

Email: via@viaccess.net

Web site: http://www.viaccess.net/

Virginia

Virginia Office for Protection & Advocacy

Ninth Street Office Bldg.

202 North 9th Street, 9th floor

Richmond, VA 23219

Phone: 804/225-2042 (Voice/TTY); 800/552-3962

Fax: 804/225-3221

Email: lawyerhl@vopa.state.va.us

Web site: http://www.vopa.state.va.us

Washington

Washington P&A System

180 West Dayton, Suite 102

Edmonds, WA 98020

Phone: 425/776-1199; 800/562-2702; (TTY); 800/905-

0209

Fax: 425/776-0601

Email: wpas@wpas-rights.org

Web site: http://www.wpas-rights.org

West Virginia

West Virginia Advocates, Inc.

Litton Bldg, 4th Floor

1207 Quarrier Street

Charleston, WV 25301

Phone: 304/346-0847 (Voice/TTY); 800/950-5250

Fax: 304/346-0867

Email: Bpeck@ezwv.com

Web site: http://www.newwave.net/~wvadvocates

Wisconsin

Wisconsin Coalition for Advocacy

16 N. Carroll Street, Suite 400

Madison, WI 53703

Phone: 608/267-0214; 608/267-0214 TTD

Fax: 608/267-0368

Email: wcamsn@w-c-a.org

Web site: http://www.w-c-a.org

Wyoming

Wyoming P&A System

320 West 25th Street, 2nd Floor

Cheyenne, WY 82001

Phone: 307/638-7668; 307/632-3496; 800/821-3091

(Voice/TTY)

800/624-7648 (WY only)

Fax: 307/638-0815

Email: wypanda@vcn.com

Web site: http://www.vcn.com/~wypanda
Subject Index

Subject Index A-1

Accessibility

ADA Technical Assistance

Programs ......................................... Chapter 7

ADA ......................................................... 6-15

health care consumers .............................. 2-14

health care providers ................................ 2-14

information technology ............................ 6-15

policy ........................................................ 2-14

Accommodation

ADA Technical Assistance

Programs ......................................... Chapter 7

arthritis ........................................................ 2-8

exercise ....................................................... 2-8

Participatory action research (PAR) ........... 2-8

ADA

Chapter 7 focuses on the Americans with

Disabilities Act and includes these crossreferences: Accommodation, Business, Compliance, Dissemination, Employment, Implementation, Information referral, Information resources, Needs assessment, Public accommodations, Service delivery, Technical Assistance,

Telecommunications, Training, Transportation,

and Utilization. Other references:

accessibility .............................................. 6-15

ADA ......................................................... 1-26

advocacy .................................................... 8-3

evaluation ................................................. 1-18

information technology ............................ 6-15

policy .............................................. 6-13, 8-13

Advocacy

Technology assistance programs .... Chapter 9

Protection and Advocacy

Projects .......................................... 9-76—9-81

ADA ........................................................... 8-3

assistive technology ................................. 6-17

developmental disabilities .......................... 8-6

disability studies ......................................... 8-6

environmental design ............................... 3-17

housing ..................................................... 3-17

information referral .................................. 3-17

international rehabilitation.......................... 6-3

policy ................................................ 6-17, 8-3

rehabilitation research .............................. 3-17

research utilization ..................................... 6-3

Aging

arthritis ........................................................ 2-3

blindness................................................... 1-16

cerebral palsy.............................................. 2-3

cognition ................................................... 8-28

databases .................................................... 2-3

deafness .................................................... 1-16

Down syndrome ......................................... 4-4

employment .............................................. 2-11

geriatric rehabilitation............................... 8-28

health care .................................................. 4-4

health promotion ........................................ 3-6

intellectual disabilities ................................ 4-4

mental retardation ....................................... 4-4

multiple sclerosis ...................................... 2-11

neuromuscular disorders .......................... 2-11

participatory action research .................... 1-16

personal assistance services ..................... 2-12

physiology ................................................ 8-28

poliomyelitis ............................................... 2-3

post-polio .................................................... 2-3

research fellowships ................................. 8-28

Agriculture .................................................... 2-62

Alternative formats

audio description ...................................... 3-51

braille ........................................................ 3-35

captioning ................................................. 3-51

remote service delivery ............................ 3-51

Alternative medicine

stroke ........................................................ 2-88

Ambulation ................................................... 2-99

American Indians/Native Americans ............. 1-7

American sign language

communication ......................................... 3-71

curriculum ................................................ 3-85

deafness ................................. 1-33, 3-71, 3-85

hearing impairments .............. 1-33, 3-71, 3-85

interview skills.......................................... 1-33

virtual reality............................................. 1-33

Amputations

bioengineering .......................................... 3-46

prosthetics ..............................3-38, 3-46, 3-84
A-2 Subject Index

rehabilitation engineering......................... 3-46

training...................................................... 3-38

Aphasia ......................................................... 3-47

Arthritis .................................................... 2-3, 2-8

Assistive technology

Chapter 3 focuses on assistive technology for

access and function. Chapter 9 focuses on the

state technology assistance programs and

includes the following cross-references:

Assistive technology, Advocacy, Consumers,

Funding, Information resources, Information

referral, Interagency cooperation, Needs

assessment, Service delivery, Systems change,

Technology assistance programs, and Training.

Other references:

Protection and Advocacy

Projects .......................................... 9-76—9-81

assistive technology ....................... 2-37, 6-16

Advocacy...................................................... 6-17

attention disorders .................................... 2-56

botulinum toxin ........................................ 2-56

brain injuries ............................................. 2-56

computer applications .............................. 4-52

daily living................................................ 6-19

decision making ....................................... 4-52

developmental disabilities ........................ 4-52

independent living .................................... 8-23

information referral .................................. 6-19

learning disabilities................................... 8-11

low vision ................................................. 8-10

mental retardation ..................................... 4-52

outcome .................................................... 8-23

policy ........................................................ 6-17

research fellowships ................................. 8-23

students with disabilities ........................... 8-11

visual impairments ................................... 8-10

vocational rehabilitation ........................... 8-23

Attention disorders ....................................... 2-56

Audio description ......................................... 3-51

Behavior disorders

children ............................................. 4-2, 4-10

computer applications .............................. 4-47

developmental disabilities .......................... 4-2

emotional disorders .................................. 4-10

family life ................................................. 4-10

mental health ............................................ 4-10

parents ...................................................... 4-47

youth ........................................................... 4-2

Bioengineering .................................... 3-46, 8-20

Bladder care .................................................. 2-92

Blindness

aging ......................................................... 1-16

alternative formats .................................... 3-35

braille ........................................................ 3-35

deafness .................................................... 1-16

engineering technology .............................. 3-3

independent living ...................................... 3-3

information technology ............................ 1-13

Internet...................................................... 3-50

low vision ................................................... 3-3

maps ......................................................... 3-91

participatory action research .................... 1-16

television .................................................. 3-50

visual impairments ................. 1-6, 1-13, 3-23,

3-50, 3-77, 3-91, 4-35

Botulinum toxin ............................................ 2-56

Braille

alternative formats .................................... 3-35

blindness................................................... 3-35

computer applications .............................. 3-83

computers ................................................. 3-61

math skills ................................................. 3-83

music ........................................................ 3-82

visual impairments ................3-61, 3-82, 3-83

Brain injuries

Model TBI Systems ........................ 2-41—2-60

Internet resources ..................................... 3-30

intervention............................................... 2-10

irritability .................................................. 2-53

learning ..................................................... 2-95

life expectancy ......................................... 2-67

limbs ......................................................... 2-79

medical rehabilitation ................................. 8-5

memory........................................... 2-18, 2-95
Subject Index A-3

mental health .............. 2-41, 2-46, 2-52, 2-53,

 2-59, 2-60

mental stress ............................................. 4-36

mentoring ................................................. 2-46

mortality.................................................... 2-67

outcomes ............................... 2-43, 2-47, 2-58

Participatory action research (PAR) ......... 8-26

pharmacology .......................2-41, 2-43, 2-48,

2-52, 2-53, 2-86

pragmatic communication ........................ 2-43

psychosocial factors ................................. 2-89

questionnaires........................................... 2-89

rehabilitation ............................................. 3-45

rehabilitation engineering......................... 3-45

rehabilitation medicine ............................. 8-26

remote service delivery ............................ 2-44

research fellowships ................................. 8-26

robotics ..................................................... 2-57

rural services................................... 2-49, 2-55

seizures ..................................................... 2-42

service delivery ........................................ 2-57

social skills ............................................... 4-27

spasticity ................................................... 2-79

spinal cord injuries ................................... 4-44

statistics....................................................... 6-8

stroke ........................................................ 3-45

substance abuse ................................ 2-54, 4-9

telerehabilitation ....................................... 2-47

transportation ............................................ 3-55

transportation accessibility ....................... 2-49

virtual reality............................................. 3-55

wheelchairs ............................................... 2-57

Burns

Model Burn Injury Systems ........... 2-19—2-24

children ..................................2-21, 2-23, 4-42

community integration ..........2-20, 2-21, 2-22

data management...................................... 2-19

medical rehabilitation ............................... 2-23

mental health ......................... 2-20, 2-24, 4-42

outcomes ........................................ 2-22, 2-23

physical fitness ......................................... 2-20

rural services............................................. 2-21

scarring ..................................................... 2-24

statistics..................................................... 2-19

stress disorders ......................................... 2-20

Business

ADA Technical Assistance

Programs ......................................... Chapter 7

Capacity building

Capacity building for Rehabilitation

Research Training............................ Chapter 8

Captioning ........................................... 3-51, 3-69

Cardiac disorders .......................................... 2-64

Cardiovascular functions ..................... 2-13, 2-80

Careers .......................................................... 8-30

Caregivers ..................................................... 4-36

Case management......................................... 1-34

Cerebral palsy ................................ 2-3, 2-9, 2-68

Child development ....................................... 4-46

Children

ambulation ................................................ 2-99

behavior disorders ............................ 4-2, 4-10

brain injuries ..................................... 4-36, 8-5

burns ...................................... 2-21, 2-23, 4-42

caregivers ................................................. 4-36

cerebral palsy............................................ 2-99

community integration ............................. 2-21

computer applications ................. 2-101, 3-64,

 3-79, 3-90

deafness .................................................... 3-60

developmental disabilities .......................... 4-2

early intervention...................................... 4-16

education .................................................. 4-16

emotional disorders .................................. 4-10

ethnic groups ............................................ 4-14

evaluation techniques ............................... 3-95

family life ............... 2-5, 4-10, 4-14, 4-16, 6-2

financial aid .............................................. 4-16

hearing aids .............................................. 3-60

language disorders ................................... 3-90

learning disabilities ......................... 3-90, 4-37

managed care.............................................. 2-5

medical rehabilitation ....................... 2-23, 8-5

mental health ................. 3-79, 4-3, 4-10, 4-42
A-4 Subject Index

mental stress ............................................. 4-36

mobility..................................................... 3-36

orthotics ...................................................... 3-1

outcomes .................................................. 2-23

parenting with a disability .......................... 6-2

physical disabilities .................................... 3-1

physical fitness ......................................... 3-95

rehabilitation engineering................. 3-1, 3-36

remote service delivery .............................. 2-5

rural services............................................. 2-21

service delivery .................................. 4-3, 6-2

spina bifida ............................................... 4-37

students ..................................................... 3-64

telerehabilitation ..................................... 2-101

visual impairments ................................... 4-14

youth ........................................................... 4-2

Chronic fatigue syndrome ................... 4-18, 4-21

Clinical management

Model Burn Injury Systems ........... 2-19—2-24

Model SCI Systems ........................ 2-25—2-40

Model TBI Systems ........................ 2-41—2-60

Clinical supervision ........................................ 8-9

Cognition

aging ......................................................... 8-28

geriatric rehabilitation............................... 8-28

independent living .................................... 3-68

memory........................................... 2-91, 3-65

multiple sclerosis ...................................... 2-91

physiology ................................................ 8-28

research fellowships ................................. 8-28

safety ........................................................ 3-68

Cognitive disabilities ........................... 3-58, 3-67

Communication

American sign language ........................... 3-71

brain injuries ............................................. 2-98

communication devices ............................ 3-16

computer applications .............................. 3-74

cued speech .............................................. 3-74

deafness .......................................... 3-71, 3-74

education .................................................. 2-84

evaluation ................................................. 3-37

hearing impairments................................. 3-71

Internet...................................................... 2-84

physical disabilities .................................. 2-84

policy .......................................................... 3-7

reading skills............................................. 2-84

remote service delivery ............................ 3-37

rural services............................................. 3-37

universal access.......................................... 3-7

wireless technologies.................................. 3-7

youth ......................................................... 2-84

Communication devices

cognitive disabilities................................. 3-67

communication ......................................... 3-16

computers ................................................. 3-67

deafness .......................................... 3-73, 3-75

developmental disabilities ........................ 3-67

language ................................................... 3-41

math skills ................................................. 3-92

neuromuscular disorders .......................... 3-40

reading skills............................................. 3-41

speech synthesis ....................................... 3-40

students ..................................................... 3-92

tests ........................................................... 3-92

TTY........................................................... 3-73

visual impairments ......................... 3-75, 3-92

wireless technology .................................. 3-67

Community-based research .......................... 3-26

Community-based services

abuse ........................................................... 4-9

autoimmune disorders ...........1-24, 4-18, 4-19

brain injuries............................................... 4-9

case management ..................................... 1-34

chronic fatigue syndrome......................... 4-18

community resources ............................... 3-28

consumers................................................. 1-34

curriculum ................................................ 4-19

daily living................................................ 4-24

databases .......................................... 1-12, 4-8

depression ................................................... 4-9

emergent disabilities ....................... 1-24, 4-18

empowerment ............................................. 4-8

ethnic groups ............................................ 4-11

health promotion ...................................... 4-19

HIV ................................................. 1-24, 4-19

intervention............................................... 4-18

leadership ................................................. 4-11

managed care............................................ 1-34

management information systems ............ 1-34
Subject Index A-5

Medicaid ................................................... 2-76

Participatory action research (PAR) ......... 4-18

program evaluation .................................. 1-34

psychiatric disabilities .................... 1-27, 4-24

service delivery .......................................... 4-8

substance abuse .......................................... 4-9

training...................................................... 4-24

Community integration

brain injuries ................ 2-10, 2-50, 2-55, 2-89

burns ...................................... 2-20, 2-21, 2-22

children ..................................................... 2-21

consulting ................................................. 6-10

education .................................................... 8-4

employment .............................................. 2-39

family life ....................................... 2-10, 2-89

functional evaluation ................................ 2-50

intervention............................................... 2-10

mental health ............................................ 2-20

mental retardation ..................................... 6-10

outcomes .................................................. 2-22

physical fitness ......................................... 2-20

psychosocial factors ................................. 2-89

questionnaires........................................... 2-89

rural services................................... 2-21, 2-55

service delivery ........................................ 2-38

stress disorders ......................................... 2-20

students with disabilities............................. 8-4

Community integration

Independent Living and

Community Integration.................... Chapter 3

Model Burn Injury Systems ........... 2-22—2-26

Model SCI Systems ........................ 2-27—2-44

Model TBI Systems ........................ 2-45—2-61

assistive technology ................................. 4-52

audio description ...................................... 3-81

behavior disorders .................................... 4-47

braille ........................................................ 3-83

brain injuries ............................................. 3-30

captioning ................................................. 3-69

child development .................................... 4-46

children ...................... 2-101, 3-64, 3-79, 3-90

communication ......................................... 3-74

computer applications .............................. 1-31

computers ................................................. 4-53

cued speech .............................................. 3-74

deafness ................................. 3-69, 3-70, 3-74

decision making ....................................... 4-52

developmental disabilities .............. 4-52, 4-53

early intervention............................ 4-46, 4-48

education .................................................. 4-45

emergency preparedness.......................... 3-70

fibromyalgia ............................................. 3-59

hearing impairments ....................... 3-69, 3-70

immunological disorders .......................... 3-59

infants ....................................................... 4-46

Internet resources ..................................... 3-30

language disorders ................................... 3-90

learning disabilities ......................... 3-90, 3-93

math skills ....................................... 3-83, 3-93

mental health ............................................ 3-79

mental retardation ........................... 4-52, 4-53

parents ............................................ 4-47, 4-48

school-to-work transition ......................... 1-32

speech ....................................................... 3-54

speech recognition ....................... 2-103, 3-76

students ..................................................... 3-64

students with disabilities ........................... 3-93

survey forms........................................... 2-103

teachers ..................................................... 4-45

telerehabilitation ..................................... 2-101

visual impairments ......................... 3-76, 3-83

Community resources

abuse ........................................................... 4-9

assistive technology ................................. 2-56

attention disorders .................................... 2-56

botulinum toxin ........................................ 2-56

brain injuries................................... 1-28, 2-85

caregivers ................................................. 4-36

children ............................................. 4-36, 8-5

communication ......................................... 2-98

community integration .................. 2-10, 2-50,

 2-55, 2-89, 4-9

computer applications .............................. 3-30

databases ............................... 2-15, 2-51, 2-94

depression ................................................... 4-9

driving ...................................................... 3-55

drugs ......................................................... 2-61

employment .............................................. 2-60

evaluation techniques ............................... 3-55

exercise ..................................................... 2-79

families ..................................................... 4-44

family life ....................................... 2-10, 2-89

fatigue ....................................................... 2-42

financial aid .............................................. 2-49

functional evaluation ...................... 2-45, 2-50
A-6 Subject Index

international rehabilitation.............. 2-94, 3-28

Compliance

ADA Technical Assistance

Programs ......................................... Chapter 7

Computers

Computers ...................................... 3-63, 3-89

aphasia ...................................................... 3-47

braille ........................................................ 3-61

cognitive disabilities................................. 3-67

communication devices ............................ 3-67

computer applications .............................. 4-53

databases .................................................. 8-32

deaf-blind ................................................. 3-48

developmental disabilities .....3-66, 3-67, 4-53

display ...................................................... 3-39

education .................................................. 4-43

independent living .......................... 3-31, 3-66

information systems ................................. 8-32

information technology ............................ 3-20

Internet............................................ 3-20, 3-31

learning disabilities................................... 4-49

management ............................................. 8-32

mental retardation ..................................... 4-53

multimedia ................................................ 3-53

reading skills................................... 3-47, 4-49

scanning.................................................... 3-88

speech ....................................................... 4-43

switch ........................................................ 3-88

training...................................................... 3-48

visual impairments ................................... 3-61

vocational rehabilitation ........................... 3-48

wireless technology .................................. 3-67

Consulting..................................................... 6-10

Consumers

Technology assistance programs .... Chapter 9

case management ..................................... 1-34

community-based services ....................... 1-34

consumers....................................... 3-49, 3-57

databases .................................................... 4-1

integration ................................................... 4-1

long term care ........................................... 2-75

managed care............................................ 1-34

management information systems ............ 1-34

nursing homes .......................................... 2-75

personal assistance services ....................... 4-1

program evaluation .................................. 1-34

surveys...................................................... 1-25

technology .................................................. 6-5

vocational rehabilitation ............................. 6-5

Cued speech ................................................. 3-74

Curriculum

American sign language ........................... 3-85

autoimmune disorders .............................. 4-19

community-based services ....................... 4-19

deafness .................................................... 3-85

developmental disabilities ........................ 4-34

health care ................................................ 4-34

health promotion ............................ 4-19, 4-41

hearing impairments................................. 3-85

HIV ........................................................... 4-19

rehabilitation counseling ............................ 8-7

service delivery ........................................ 4-34

Daily living ................................ 2-66, 4-24, 6-19

Data management ......................................... 2-19

Databases

Model Burn Injury Systems ........... 2-19—2-24

Model SCI Systems ........................ 2-25—2-40

Model TBI Systems ........................ 2-41—2-60

aging ........................................................... 2-3

arthritis ........................................................ 2-3

brain injuries .......................... 2-15, 2-51, 2-94

cerebral palsy.............................................. 2-3

community-based services ............... 1-12, 4-8

computers ................................................. 8-32

consumers................................................... 4-1

employment .............................................. 3-13

empowerment ............................................. 4-8

ergonomics ............................................... 3-13

housing ..................................................... 3-15

information referral .................................. 3-15

information systems ................................. 8-32

integration ................................................... 4-1

international rehabilitation........................ 2-94

Internet...................................................... 3-13

land mines ................................................ 3-10

managed care............................................ 2-90

management ............................................. 8-32

personal assistance services ....................... 4-1

poliomyelitis ............................................... 2-3
Subject Index A-7

post-polio .................................................... 2-3

rehabilitation engineering......................... 3-10

repetitive strain injuries ............................ 3-13

service delivery .......................................... 4-8

statistics............................................. 2-7, 2-90

stroke .......................................................... 2-7

training...................................................... 3-15

Deaf-blind ..................................................... 3-48

Deafness

aging ......................................................... 1-16

American sign language ........ 1-33, 3-71, 3-85

blindness................................................... 1-16

captioning ................................................. 3-69

children ..................................................... 3-60

communication ............................... 3-71, 3-74

communication devices .................. 3-73, 3-75

computer applications ...........3-69, 3-70, 3-74

cued speech .............................................. 3-74

curriculum ................................................ 3-85

emergency preparedness.......................... 3-70

employment ................................................ 8-8

hearing aids .............................................. 3-60

hearing impairments ............... 1-1, 1-33, 3-69,

 3-70, 3-71, 3-85

interview skills.......................................... 1-33

participatory action research .................... 1-16

TTY........................................................... 3-73

virtual reality............................................. 1-33

visual impairments ................................... 3-75

Decision making ........................................... 4-52

Depression ...................................................... 4-9

Developmental disabilities

advocacy .................................................... 8-6

assistive technology ................................. 4-52

behavior disorders ...................................... 4-2

children ....................................................... 4-2

cognitive disabilities................................. 3-67

communication devices ............................ 3-67

computer applications .................... 4-52, 4-53

computers ..............................3-66, 3-67, 4-53

curriculum ................................................ 4-34

decision making ....................................... 4-52

disability studies ......................................... 8-6

health care ................................................ 4-34

inclusion ..................................................... 4-7

independent living .................................... 3-66

Internet........................................................ 4-7

mental retardation ............................ 3-27, 4-7,

4-51—4-53

nutrition .................................................... 4-51

service delivery ........................................ 4-34

wireless technology .................................. 3-67

youth ........................................................... 4-2

Diabetes ........................................................ 2-65

Dialysis ....................................................... 2-102

Disability studies

advocacy .................................................... 8-6

developmental disabilities .......................... 8-6

rehabilitation research .............................. 8-27

research..................................................... 8-17

research fellowships .............. 8-13, 8-17, 8-27

Display

computers ................................................. 3-39

Dissemination

Knowledge Dissemination and

Utilization ........................................ Chapter 6

ADA Technical Assistance

Programs ......................................... Chapter 7

therapy ...................................................... 8-12

Diversity

family life ................................................. 8-18

international rehabilitation.......................... 6-9

rehabilitation research ...................... 6-9, 8-18

research fellowships ................................. 8-18

Down syndrome ............................................. 4-4

Driving .......................................................... 3-55

Drugs (see also Substance abuse)

brain injuries ............................................. 2-61

Early intervention ................................ 4-46, 4-48

Education

communication ......................................... 2-84

community integration ............................... 8-4
A-8 Subject Index

computer applications .............................. 4-45

computers ................................................. 4-43

early intervention...................................... 4-16

education .................................................... 1-3

employment .............................................. 4-50

family life ................................................. 4-16

financial aid .............................................. 4-16

Internet...................................................... 2-84

leadership ................................................. 4-25

multimedia ................................................ 4-50

physical disabilities .................................. 2-84

reading skills............................................. 2-84

research..................................................... 2-36

role models ............................................... 4-50

school-to-work transition ......................... 4-50

self-determination ..................................... 4-25

speech ....................................................... 4-43

students with disabilities............................. 8-4

teachers ..................................................... 4-45

universal design........................................ 6-14

youth ............................................... 2-84, 4-50

Electrical stimulation ........................... 2-81, 2-93

Emergency preparedness.............................. 3-70

Emergent disabilities

autoimmune disorders .................... 1-24, 4-18

chronic fatigue syndrome......................... 4-18

community-based services ............. 1-24, 4-18

HIV ................................................. 1-10, 1-24

Internet...................................................... 1-10

intervention............................................... 4-18

Participatory action research (PAR) . 4-5, 4-18

rehabilitation research ................................ 4-5

substance abuse ........................................ 1-10

Emotional disorders...................................... 4-10

Employment

Employment Outcomes .................... Chapter 1

ADA Technical Assistance

Programs ......................................... Chapter 7

aging ......................................................... 2-11

brain injuries ............................................. 2-60

careers....................................................... 8-30

community integration ............................. 2-39

databases .................................................. 3-13

deafness ...................................................... 8-8

education .................................................. 4-50

ergonomics ............................................... 3-13

ethnic groups .............................................. 2-6

Internet...................................................... 3-13

mental health ............................................ 2-60

multimedia ................................................ 4-50

multiple sclerosis ...................................... 2-11

neuromuscular disorders .......................... 2-11

repetitive strain injuries ............................ 3-13

research fellowships ................................. 8-30

role models ............................................... 4-50

school-to-work transition ......................... 4-50

SSI............................................................. 4-31

youth ............................................... 4-31, 4-50

Empowerment................................................. 4-8

Engineering technology ................................. 3-3

Engineering .................................................. 8-14

Environmental design ................................... 3-17

Epilepsy ........................................................ 4-17

Ergonomics............................................ 3-8, 3-13

Ethnic groups

agriculture ................................................. 2-62

children ..................................................... 4-14

community-based services ....................... 4-11

employment ................................................ 2-6

family life ................................................. 4-14

leadership ................................................. 4-11

Participatory action research (PAR) ......... 2-62

professional training ................................... 8-2

rural services............................................. 2-62

service delivery ........................................ 2-62

visual impairments ................................... 4-14

Evaluation

Model Burn Injury Systems ........... 2-19—2-24

Model SCI Systems ........................ 2-25—2-40

Model TBI Systems ........................ 2-41—2-60

ADA ......................................................... 1-18

communication ......................................... 3-37

outcome .................................................... 4-23
Subject Index A-9

psychiatric disabilities .............................. 8-19

psychological aspects ............................... 8-19

remote service delivery ............................ 3-37

research fellowships ................................. 8-19

research methodology .............................. 8-19

rural services............................................. 3-37

tests ........................................................... 4-23

vocational rehabilitation ........................... 4-23

Evaluation techniques ......................... 3-55, 3-95

Exercise

accommodation .......................................... 2-8

arthritis ........................................................ 2-8

brain injuries ............................................. 2-79

functional electrical stimulation ............... 2-63

information technology ............................ 3-11

limbs ......................................................... 2-79

multiple sclerosis ...................................... 2-87

nutrition .................................................... 2-72

obesity ...................................................... 2-72

older adults ............................................... 2-16

paraplegia ................................................. 2-72

Participatory action research (PAR) ........... 2-8

physical fitness ......................................... 2-72

poliomyelitis ............................................. 2-16

recreation .................................................. 3-11

spasticity ................................................... 2-79

Family life

behavior disorders .................................... 4-10

brain injuries .......................... 2-10, 2-89, 4-44

children ...................2-5, 4-10, 4-14, 4-16, 6-2

chronic fatigue syndrome......................... 4-21

community integration ................... 2-10, 2-89

diversity .................................................... 8-18

early intervention...................................... 4-16

education .................................................. 4-16

emotional disorders .................................. 4-10

ethnic groups ............................................ 4-14

financial aid .............................................. 4-16

intervention............................................... 2-10

managed care.............................................. 2-5

mental health ............................................ 4-10

parenting with a disability ................ 4-12, 6-2

parents ...................................................... 4-12

psychosocial factors ................................. 2-89

questionnaires........................................... 2-89

rehabilitation research .............................. 8-18

remote service delivery .............................. 2-5

research fellowships ................................. 8-18

service delivery .......................................... 6-2

spinal cord injuries ................................... 4-44

visual impairments ................................... 4-14

youth ......................................................... 4-12

Fatigue .......................................................... 2-42

Fellowships

Switzer Fellows ................................ 8-3—8-12

Fibromyalgia ................................................. 3-59

Financial aid ........................................ 2-49, 4-16

Functional assessment .................................. 2-78

Functional electrical stimulation ................... 2-63

Functional evaluation

Health and Function ....................... Chapter 2

brain injuries................................... 2-45, 2-50

community integration ............................. 2-50

Funding

Technology assistance programs .... Chapter 9

Geriatric rehabilitation .................................. 8-28

Health care

Health and Function ....................... Chapter 2

accessibility .............................................. 2-14

aging .......................................................... 4-4

curriculum ................................................ 4-34

developmental disabilities ........................ 4-34

Down syndrome ......................................... 4-4

health care consumers .............................. 2-14

health care providers ................................ 2-14

intellectual disabilities ................................ 4-4

medical equipment ................................... 3-22

mental retardation ....................................... 4-4

policy ........................................................ 2-14

rehabilitation ............................................. 8-21

research fellowships ................................. 8-21

service delivery ........................................ 4-34

Health promotion

aging ........................................................... 3-6
A-10 Subject Index

autoimmune disorders .............................. 4-19

community-based services ....................... 4-19

curriculum ...................................... 4-19, 4-41

HIV ........................................................... 4-19

Hearing aids .................................................. 3-60

Hearing impairments

American sign language ........ 1-33, 3-71, 3-85

captioning ................................................. 3-69

communication ......................................... 3-71

computer applications .................... 3-69, 3-70

curriculum ................................................ 3-85

deafness .............. 1-1, 1-33, 3-69—3-71, 3-85

emergency preparedness .......................... 3-70

hearing impairments................................. 1-19

interview skills.......................................... 1-33

mental health .............................................. 1-2

rehabilitation engineering........................... 3-4

rehabilitation research ................................ 3-4

virtual reality............................................. 1-33

HIV

autoimmune disorders .................... 1-24, 4-19

community-based services ............. 1-24, 4-19

curriculum ................................................ 4-19

emergent disabilities ....................... 1-10, 1-24

health promotion ...................................... 4-19

Internet...................................................... 1-10

substance abuse ........................................ 1-10

Homelessness ............................................... 1-22

Housing ........................................................ 4-26

advocacy .................................................. 3-17

databases .................................................. 3-15

environmental design ............................... 3-17

information referral ........................ 3-15, 3-17

rehabilitation research .............................. 3-17

surveys...................................................... 4-33

training...................................................... 3-15

Immunological disorders .............................. 3-59

Implementation

ADA Technical Assistance

Programs ......................................... Chapter 7

Inclusion ......................................................... 4-7

Independent living

Independent Living and

Community Integration.................... Chapter 3

assistive technology ................................. 8-23

mass media ................................................. 6-4

outcome .................................................... 8-23

Participatory action research (PAR) ......... 2-32

person-centered planning ......................... 4-38

personal assistance services ..................... 2-33

program evaluation .................................. 2-32

psychiatric rehabilitation ............................ 8-1

psychiatry ................................................... 8-1

rehabilitation research ................................ 8-1

remote service delivery ............................ 2-33

research fellowships ................................. 8-23

research utilization ..................................... 6-6

vocational rehabilitation ........................... 8-23

Infants ........................................................... 4-46

Informatics .................................................... 4-32

Information referral

ADA Technical Assistance

Programs ......................................... Chapter 7

Technology assistance programs .... Chapter 9

advocacy .................................................. 3-17

assistive technology ................................. 6-19

daily living................................................ 6-19

databases .................................................. 3-15

environmental design ............................... 3-17

housing ........................................... 3-15, 3-17

rehabilitation research .............................. 3-17

training...................................................... 3-15

Information resources

ADA Technical Assistance

Programs ......................................... Chapter 7

Technology assistance programs .... Chapter 9

informatics ................................................ 4-32

Internet.............................................. 2-2, 4-32

neuromuscular disorders ............................ 2-2

psychosocial factors ................................... 2-2

statistics..................................................... 2-30

Information systems ............................ 6-20, 8-32

Information technology

accessibility ........................... 6-15, 7-2— 7-11
Subject Index A-11

ADA ......................................................... 6-15

blindness................................................... 1-13

computers ................................................. 3-20

exercise ..................................................... 3-11

Internet...................................................... 3-20

measurement............................................... 7-9

recreation .................................................. 3-11

students with disabilities ........................... 1-17

technical assistance ................ 3-25, 7-2—7-11

training...................................1-14, 1-17, 3-25

universal design.......................................... 7-2

visual impairments ................................... 1-13

Integration....................................................... 4-1

Intellectual disabilities .................................... 4-4

Interagency cooperation

Technology assistance programs .... Chapter 9

program evaluation .................................. 8-33

International rehabilitation

advocacy ................................... 2-94, 6-3, 6-9

Internet

blindness................................................... 3-50

cerebral palsy.............................................. 2-9

communication ......................................... 2-84

computers ....................................... 3-20, 3-31

databases .................................................. 3-13

developmental disabilities .......................... 4-7

education .................................................. 2-84

emergent disabilities................................. 1-10

employment .............................................. 3-13

ergonomics ............................................... 3-13

HIV ........................................................... 1-10

inclusion ..................................................... 4-7

independent living .................................... 3-31

informatics ................................................ 4-32

information resources ....................... 2-2, 4-32

information technology ............................ 3-20

long term disabilities .................................. 2-9

mental retardation ....................................... 4-7

multiple sclerosis ........................................ 2-9

neuromuscular disorders ............................ 2-2

physical disabilities .................................. 2-84

psychosocial factors ................................... 2-2

reading skills............................................. 2-84

repetitive strain injuries ............................ 3-13

research utilization ................................... 6-11

resources................................................... 3-30

substance abuse ........................................ 1-10

television .................................................. 3-50

visual impairments ................................... 3-50

youth ......................................................... 2-84

Intervention

autoimmune disorders .............................. 4-18

brain injuries ............................................. 2-10

chronic fatigue syndrome......................... 4-18

community integration ............................. 2-10

community-based services ....................... 4-18

emergent disabilities................................. 4-18

epilepsy..................................................... 4-17

family life ................................................. 2-10

outcome .................................................... 4-17

Participatory action research (PAR) ......... 4-18

remote service delivery ............................ 4-17

rural services............................................. 4-17

youth ......................................................... 4-17

Interview skills.............................................. 1-33

Irritability ...................................................... 2-53

Joints ............................................................. 3-72

Kidney disorders ........................................ 2-102

Land mines ................................................... 3-10

Language ...................................................... 3-41

Language disorders ...................................... 3-90

Leadership

community-based services ............. 4-11, 4-25

Learning........................................................ 2-95

Learning disabilities

assistive technology ................................. 8-11

children ........................................... 3-90, 4-37

computer applications .................... 3-90, 3-93

computers ................................................. 4-49

language disorders ................................... 3-90

math skills ................................................. 3-93

reading skills............................................. 4-49
A-12 Subject Index

spina bifida ............................................... 4-37

students with disabilities ................. 3-93, 8-11

Life expectancy ............................................ 2-67

Life skills ...................................................... 3-58

Limbs ..................................................... 2-79, 3-9

Literacy ......................................................... 3-56

Long term care.............................................. 2-75

Long term disabilities ..................................... 2-9

Longitudinal studies ..................................... 4-29

Low vision

assistive technology ................................. 8-10

blindness ..................................................... 3-3

engineering technology .............................. 3-3

independent living ...................................... 3-3

Managed care

case management ..................................... 1-34

children ....................................................... 2-5

community-based services ....................... 1-34

consumers........................................ 1-34 , 2-4

databases .................................................. 2-90

family life ................................................... 2-5

management information systems ............ 1-34

program evaluation .................................. 1-34

remote service delivery .............................. 2-5

statistics..................................................... 2-90

Management information systems................ 1-34

Management ................................................. 8-32

Maps ............................................................. 3-91

Mass media ..................................................... 6-4

Math skills

braille ........................................................ 3-83

communication devices ............................ 3-92

computer applications .................... 3-83, 3-93

learning disabilities................................... 3-93

students..................................3-43, 3-86, 3-92

students with disabilities ........................... 3-93

tests ........................................................... 3-92

visual impairments ................3-83, 3-86, 3-92

Measurement

accessibility ................................................ 7-9

cerebral palsy............................................ 2-68

information technology .............................. 7-9

pressure ulcers .......................................... 2-74

seating....................................................... 2-70

spasticity ................................................... 2-68

technical assistance .................................... 7-9

wheelchairs ............................................... 2-70

Media ................................................... 3-51, 3-52

Medicaid

community-based services ....................... 2-76

Medical equipment

health care ................................................ 3-22

Medical rehabilitation

brain injuries............................................... 8-5

burns ......................................................... 2-23

children ............................................. 2-23, 8-5

outcomes .................................................. 2-23

research fellowships ................................. 8-29

stroke ........................................................ 2-83

Memory

brain injuries................................... 2-18, 2-95

cognition ......................................... 2-91, 3-65

learning ..................................................... 2-95

multiple sclerosis ...................................... 2-91

Mental health

behavior disorders .................................... 4-10

brain injuries ......................... 2-41, 2-46, 2-52,

 2-53, 2-59, 2-60

burns ...................................... 2-20, 2-24, 4-42

children .......................... 3-79, 4-3, 4-10, 4-42

community integration ............................. 2-20

computer applications .............................. 3-79

emotional disorders .................................. 4-10

employment .............................................. 2-60

family life ................................................. 4-10

hearing impairments................................... 1-2
Subject Index A-13

irritability .................................................. 2-53

mentoring ................................................. 2-46

pharmacology ........................2-41, 2-52, 2-53

physical fitness ......................................... 2-20

scarring ..................................................... 2-24

service delivery .......................................... 4-3

spinal cord injuries ................................... 4-28

stress disorders ......................................... 2-20

women ...................................................... 4-28

Mental illness ................................................ 1-21

Mental retardation

aging ........................................................... 4-4

assistive technology ................................. 4-52

community integration ............................. 6-10

computer applications .................... 4-52, 4-53

computers ................................................. 4-53

consulting ................................................. 6-10

decision making ....................................... 4-52

developmental disabilities ............... 3-27, 4-7,

 4-51, 4-52, 4-53

Down syndrome ......................................... 4-4

health care .................................................. 4-4

inclusion ..................................................... 4-7

intellectual disabilities ................................ 4-4

Internet........................................................ 4-7

nutrition .................................................... 4-51

Mental stress ................................................. 4-36

Mentoring ............................................ 1-15, 2-46

Mobility

children ..................................................... 3-36

limbs ........................................................... 3-9

orthotics ...................................................... 3-9

prosthetics ................................................... 3-9

rehabilitation engineering......................... 3-36

robotics ....................................................... 3-2

spinal cord injuries ..................................... 3-2

walking aids................................................ 3-9

wheelchair design ..................................... 3-94

wheelchair transportation safety............... 3-19

wheelchairs ............................................... 3-94

Model programs

Listings for NIDRR’s model systems can be

found in Chapter 2, with Model Burn Injury

Systems on pages 2-19—2-24, Spinal Cord

Injury Systems on pages 2-25–2-40, and Model

Traumatic Brain Injury Systems on pages 2-

41—2-60. Cross-references include: Clinical

management, Community integration, Evaluation, Model programs, Outcome, Psychosocial

factors, Rehabilitation medicine, Rehabilitation

research, Rehabilitation services, Service

delivery, Statistics, Violence, and Vocational

rehabilitation.

Mortality ....................................................... 2-67

Motor function .............................................. 2-77

Multimedia ........................................... 3-53, 4-50

Multiple sclerosis

aging ......................................................... 2-11

cerebral palsy.............................................. 2-9

cognition ................................................... 2-91

employment .............................................. 2-11

exercise ..................................................... 2-87

Internet........................................................ 2-9

long term disabilities .................................. 2-9

memory..................................................... 2-91

neuromuscular disorders .......................... 2-11

Muscular dystrophy ...................................... 3-42

Music ............................................................ 3-82

Needs assessment

ADA Technical Assistance

Programs ......................................... Chapter 7

Technology assistance programs .... Chapter 9

literacy ...................................................... 3-56

outcomes .................................................. 3-33

students with disabilities ........................... 3-56

Neuromuscular disorders

aging ......................................................... 2-11

communication devices ............................ 3-40

employment .............................................. 2-11

information resources................................. 2-2

Internet........................................................ 2-2

multiple sclerosis ...................................... 2-11
A-14 Subject Index

rehabilitation ............................................... 4-6

remote service delivery ............................ 4-17

research fellowships ....................... 8-23, 8-25

rural services............................................. 4-17

telerehabilitation ....................................... 2-47

tests ........................................................... 4-23

vocational rehabilitation ................. 4-23, 8-23

youth ......................................................... 4-17

Paralysis

robotics ..................................................... 3-80

stroke ...................................................... 2-100

Paraplegia ..................................................... 2-72

Parenting with a disability ..................... 4-12, 6-2

Parents

behavior disorders .................................... 4-47

computer applications .................... 4-47, 4-48

early intervention...................................... 4-48

family life ................................................. 4-12

occupational therapy ................................ 4-13

parenting with a disability ........................ 4-12

youth ......................................................... 4-12

Participatory action research (PAR)

accommodation .......................................... 2-8

aging ......................................................... 1-16

agriculture ................................................. 2-62

arthritis ........................................................ 2-8

autoimmune disorders .............................. 4-18

blindness................................................... 1-16

brain injuries ............................................. 8-26

chronic fatigue syndrome......................... 4-18

community-based research....................... 3-26

community-based services ....................... 4-18

deafness .................................................... 1-16

emergent disabilities......................... 4-5, 4-18

ethnic groups ............................................ 2-62

exercise ....................................................... 2-8

independent living .......................... 2-32, 3-26

intervention............................................... 4-18

nursing homes .......................................... 4-20

outcomes .................................................... 4-6

policy ........................................................ 3-26

program evaluation .................................. 2-32

psychiatric disabilities ................................ 4-6

rehabilitation ............................................... 4-6

orthotics .................................................... 8-16

prosthetics ................................................. 8-16

psychosocial factors ................................... 2-2

rehabilitation engineering......................... 8-16

research fellowships ................................. 8-16

speech synthesis ....................................... 3-40

Nursing homes..................................... 2-75, 4-20

Nutrition ............................................... 2-72, 4-51

Obesity .......................................................... 2-72

Occupational therapy ................ 4-13, 8-12, 8-14

Older adults .................................................. 2-16

Orthotics

children ....................................................... 3-1

limbs ........................................................... 3-9

mobility....................................................... 3-9

muscular dystrophy .................................. 3-42

neuromuscular disorders .......................... 8-16

physical disabilities .................................... 3-1

prosthetics ......................................... 3-9, 8-16

rehabilitation engineering................. 3-1, 8-16

research fellowships ................................. 8-16

stroke ........................................................ 3-34

walking aids................................................ 3-9

Outcomes

Model Burn Injury Systems ........... 2-19—2-24

Model SCI Systems ........................ 2-25—2-40

Model TBI Systems ........................ 2-41—2-60

assistive technology ................................. 8-23

brain injuries .......................... 2-43, 2-47, 2-58

burns ............................................... 2-22, 2-23

children ..................................................... 2-23

community integration ............................. 2-22

epilepsy..................................................... 4-17

evaluation ....................................... 3-29, 4-23

independent living .................................... 8-23

intervention............................................... 4-17

medical rehabilitation ............................... 2-23

mental illness ............................................ 1-21

needs assessment ...................................... 3-33

Participatory action research (PAR) ........... 4-6

pharmacology ........................................... 2-43

psychiatric disabilities ................................ 4-6
Subject Index A-15

rehabilitation medicine ............................. 8-26

rehabilitation research ................................ 4-5

research fellowships ................................. 8-26

rural services............................................. 2-62

service delivery ........................................ 2-62

Person-centered planning ............................. 4-38

Personal assistance services

abuse ......................................................... 4-39

aging ......................................................... 2-12

consumers................................................... 4-1

databases .................................................... 4-1

independent living .................................... 2-33

integration ................................................... 4-1

remote service delivery ............................ 2-33

Pharmaceuticals

cardiovascular function .................. 2-13, 2-80

tetraplegia ................................................. 2-13

Pharmacology

brain injuries ............... 2-41, 2-43, 2-48, 2-52,

 2-53, 2-86

irritability .................................................. 2-53

mental health ......................... 2-41, 2-52, 2-53

outcomes .................................................. 2-43

pragmatic communication ........................ 2-43

Physical disabilities................................ 2-84, 3-1

Physical fitness

burns ......................................................... 2-20

children ..................................................... 3-95

community integration ............................. 2-20

evaluation techniques ............................... 3-95

exercise ..................................................... 2-72

mental health ............................................ 2-20

nutrition .................................................... 2-72

obesity ...................................................... 2-72

paraplegia ................................................. 2-72

stress disorders ......................................... 2-20

Physical medicine ................................ 8-24, 8-31

Physical therapy

dissemination ............................................ 8-12

engineering ............................................... 8-14

joints ......................................................... 3-72

occupational therapy ...................... 8-12, 8-14

rehabilitation success................................ 3-72

research utilization ................................... 8-12

speech language pathology ...................... 8-12

stroke ........................................................ 2-73

Physiology .................................................... 8-28

Policy

accessibility .............................................. 2-14

ADA ................................................. 6-13, 8-3

advocacy .......................................... 6-17, 8-3

assistive technology ................................. 6-17

communication ........................................... 3-7

community-based research....................... 3-26

health care consumers .............................. 2-14

health care providers ................................ 2-14

independent living .................................... 3-26

participatory action research .................... 3-26

universal access.......................................... 3-7

wireless technologies.................................. 3-7

Poliomyelitis .......................................... 2-3, 2-16

Post-polio ........................................................ 2-3

Posture .......................................................... 3-44

Pressure sores ............................................... 2-66

Pressure ulcers ..................................... 2-65, 2-74

Professional training

ethnic groups .............................................. 8-2

Program evaluation

case management ..................................... 1-34

community-based services ....................... 1-34

consumers................................................. 1-34

independent living .................................... 2-32

interagency cooperation ........................... 8-33

managed care............................................ 1-34

management information systems ............ 1-34

Participatory action research (PAR) ......... 2-32

service delivery ........................................ 2-31

Prosthetics

amputations ........................... 3-38, 3-46, 3-84

bioengineering .......................................... 3-46
A-16 Subject Index

limbs ........................................................... 3-9

mobility....................................................... 3-9

neuromuscular disorders .......................... 8-16

orthotics ............................................ 3-9, 8-16

rehabilitation engineering............... 3-46, 8-16

research fellowships ................................. 8-16

training...................................................... 3-38

walking aids................................................ 3-9

Protection and Advocacy

Projects ........................................... 9-76—9-81

Psychiatric disabilities

community-based services ............. 1-27, 4-24

daily living................................................ 4-24

evaluation ................................................. 8-19

outcomes .................................................... 4-6

Participatory action research (PAR) ........... 4-6

psychiatric disabilities .............................. 1-29

psychological aspects ............................... 8-19

psychosocial factors ................................. 1-20

rehabilitation ............................................... 4-6

research fellowships ....................... 8-19, 8-22

research methodology .............................. 8-19

supported employment ............................. 1-20

training...................................................... 4-24

Psychiatric rehabilitation ................................ 8-1

Psychological aspects ................................... 8-19

Psychosocial factors

Model Burn Injury Systems ........... 2-19—2-24

Model SCI Systems ........................ 2-25—2-40

Model TBI Systems ........................ 2-41—2-60

brain injuries ............................................. 2-89

community integration ............................. 2-89

family life ................................................. 2-89

information resources................................. 2-2

Internet........................................................ 2-2

longitudinal studies .................................. 4-29

neuromuscular disorders ............................ 2-2

psychiatric disabilities .............................. 1-20

qualitative analysis ................................... 4-29

questionnaires........................................... 2-89

spinal cord injuries ................................... 4-29

supported employment ............................. 1-20

Public accommodation

ADA Technical Assistance

Programs ......................................... Chapter 7

Qualitative analysis....................................... 4-29

Questionnaires .............................................. 2-89

Reading skills

aphasia ...................................................... 3-47

communication ......................................... 2-84

communication devices ............................ 3-41

computers ....................................... 3-47, 4-49

education .................................................. 2-84

Internet...................................................... 2-84

language ................................................... 3-41

learning disabilities................................... 4-49

physical disabilities .................................. 2-84

youth ......................................................... 2-84

Recreation ......................................................3-11

Rehabilitation

American Indians/Native Americans ......... 1-7

brain injuries ............................................. 3-45

health care ................................................ 8-21

outcomes .................................................... 4-6

Participatory action research (PAR) ........... 4-6

psychiatric disabilities ................................ 4-6

remote service delivery ...................... 1-7, 1-8

research fellowships ................................. 8-21

rural services....................................... 1-7, 1-8

stroke ........................................................ 3-45

transportation .............................................. 1-8

Rehabilitation counseling ............................... 8-7

Rehabilitation engineering

amputations .............................................. 3-46

bioengineering ................................ 3-46, 8-20

brain injuries ............................................. 3-45

children ............................................. 3-1, 3-36

databases .................................................. 3-10

hearing impairments................................... 3-4

land mines ................................................ 3-10

mobility..................................................... 3-36

neuromuscular disorders .......................... 8-16

orthotics ............................................ 3-1, 8-16

physical disabilities .................................... 3-1

physical medicine ..................................... 8-31
Subject Index A-17

posture ...................................................... 3-44

prosthetics ....................................... 3-46, 8-16

rehabilitation ............................................. 3-45

rehabilitation engineering......................... 3-14

rehabilitation medicine ............................. 8-20

rehabilitation research ................................ 3-4

remote service delivery .............................. 3-5

research fellowships ....................... 8-16, 8-20

rural services............................................... 3-5

safety ........................................................ 3-18

seating....................................................... 3-18

stroke ........................................................ 3-45

transportation .................................. 3-18, 3-62

wheelchair design ........................... 3-18, 3-62

wheelchairs ............................................... 3-44

Rehabilitation medicine

Model Burn Injury Systems ........... 2-19—2-24

Model SCI Systems ........................ 2-25—2-40

Model TBI Systems ........................ 2-41—2-60

bioengineering .......................................... 8-20

brain injuries ............................................. 8-26

Participatory action research (PAR) ......... 8-26

rehabilitation engineering......................... 8-20

research fellowships ....................... 8-20, 8-26

Rehabilitation research

Model Burn Injury Systems ........... 2-19—2-24

Model SCI Systems ........................ 2-25—2-40

Model TBI Systems ........................ 2-41—2-60

advocacy .................................................. 3-17

disability studies ....................................... 8-27

diversity ............................................ 6-9, 8-18

emergent disabilities................................... 4-5

environmental design ............................... 3-17

family life ................................................. 8-18

hearing impairments................................... 3-4

housing ..................................................... 3-17

independent living ...................................... 8-1

information referral .................................. 3-17

international rehabilitation.......................... 6-9

Participatory action research (PAR) ........... 4-5

psychiatric rehabilitation ............................ 8-1

psychiatry ................................................... 8-1

rehabilitation engineering........................... 3-4

research fellowships ....................... 8-18, 8-27

Rehabilitation services

Model Burn Injury Systems ........... 2-19—2-24

Model SCI Systems ........................ 2-25—2-40

Model TBI Systems ........................ 2-41—2-60

Rehabilitation success .................................. 3-72

Remote service delivery

remote service delivery .................... 2-1, 3-21

alternative formats .................................... 3-51

American Indians/Native Americans ......... 1-7

audio description ...................................... 3-51

brain injuries ............................................. 2-44

captioning ................................................. 3-51

children ....................................................... 2-5

communication ......................................... 3-37

epilepsy..................................................... 4-17

evaluation ................................................. 3-37

family life ................................................... 2-5

independent living .................................... 2-33

intervention............................................... 4-17

managed care.............................................. 2-5

media ........................................................ 3-51

outcome .................................................... 4-17

personal assistance services ..................... 2-33

rehabilitation ....................................... 1-7, 1-8

rehabilitation engineering........................... 3-5

research..................................................... 1-11

rural services............. 1-7, 1-8, 3-5, 3-37, 4-17

training...................................................... 1-11

transportation .............................................. 1-8

youth ......................................................... 4-17

Repetitive strain injuries ...................... 2-17, 3-13

Research

disability studies ....................................... 8-17

education .................................................. 2-36

remote service delivery ............................ 1-11

research fellowships ................................. 8-17

service delivery .............................. 2-25, 2-26

training...................................................... 1-11

Research fellowships

Capacity Building for Rehabilitation

Research Training............................ Chapter 8

Switzer Fellows ................................ 8-3—8-12

Research methodology ................................. 8-19
A-18 Subject Index

Research utilization

advocacy .................................................... 6-3

disabilities ................................................. 6-18

dissemination ............................................ 8-12

independent living ...................................... 6-6

information systems ................................. 6-20

international rehabilitation.......................... 6-3

Internet...................................................... 6-11

occupational therapy ................................ 8-12

physical therapy ....................................... 8-12

speech language pathology ...................... 8-12

Robotics

brain injuries ............................................. 2-57

mobility....................................................... 3-2

paralysis .................................................... 3-80

service delivery ........................................ 2-57

spinal cord injuries ..................................... 3-2

stroke ........................................................ 3-12

wheelchairs ............................................... 2-57

Role models .................................................. 4-50

Rural services

agriculture ................................................. 2-62

American Indians/Native Americans ......... 1-7

brain injuries................................... 2-49, 2-55

burns ......................................................... 2-21

children ..................................................... 2-21

communication ......................................... 3-37

community integration ................... 2-21, 2-55

epilepsy..................................................... 4-17

ethnic groups ............................................ 2-62

evaluation ................................................. 3-37

financial aid .............................................. 2-49

intervention............................................... 4-17

outcome .................................................... 4-17

Participatory action research (PAR) ......... 2-62

rehabilitation ....................................... 1-7, 1-8

rehabilitation engineering........................... 3-5

remote service delivery .............. 1-7, 1-8, 3-5,

 3-37, 4-17

service delivery ........................................ 2-62

transportation .............................................. 1-8

transportation accessibility ....................... 2-49

youth ......................................................... 4-17

Safety ................................................... 3-18, 3-68

Scanning

computers ................................................. 3-88

switch ........................................................ 3-88

Scarring ......................................................... 2-24

School-to-work transition

computer applications .............................. 1-32

education .................................................. 4-50

employment .............................................. 4-50

multimedia ................................................ 4-50

role models ............................................... 4-50

students with disabilities ........................... 4-15

youth ......................................................... 4-50

Seating

measurement............................................. 2-70

rehabilitation engineering......................... 3-18

safety ........................................................ 3-18

transportation ............................................ 3-18

wheelchair design ..................................... 3-18

wheelchairs ............................................... 2-70

Seizures ......................................................... 2-42

Self employment ........................................... 1-23

Self-determination ........................................ 4-25

Sensory disabilities ....................................... 3-52

Service delivery

Model Burn Injury Systems ........... 2-19—2-24

Model SCI Systems ........................ 2-25—2-40

Model TBI Systems ........................ 2-41—2-60

ADA Technical Assistance

Programs ......................................... Chapter 7

Technology assistance programs .... Chapter 9

service delivery ........................................ 2-82

agriculture ................................................. 2-62

brain injuries ............................................. 2-57

children ............................................... 4-3, 6-2

clinical supervision ..................................... 8-9

community integration ............................. 2-38

community-based services ......................... 4-8

curriculum ................................................ 4-34

databases .................................................... 4-8

developmental disabilities ........................ 4-34

empowerment ............................................. 4-8
Subject Index A-19

ethnic groups ............................................ 2-62

family life ................................................... 6-2

health care ................................................ 4-34

mental health .............................................. 4-3

parenting with a disability .......................... 6-2

Participatory action research (PAR) ......... 2-62

program evaluation .................................. 2-31

research........................................... 2-25, 2-26

research fellowships ................................. 8-15

robotics ..................................................... 2-57

rural services............................................. 2-62

vocational rehabilitation ............................. 8-9

wheelchairs ............................................... 2-57

Social skills

brain injuries ............................................. 4-27

Software ............................................... 3-43, 3-58

Spasticity.............................................. 2-68, 2-79

Speech........................................ 3-40, 3-54, 4-43

Speech language pathology ......................... 8-12

Speech recognition

computer applications .................. 2-103, 3-76

survey forms........................................... 2-103

visual impairments ................................... 3-76

Spina bifida ................................................... 4-37

Spinal cord injuries

Model SCI Systems ........................ 2-25—2-40

spinal cord injuries ......................... 4-30, 6-12

brain injuries ............................................. 4-44

families ..................................................... 4-44

longitudinal studies .................................. 4-29

mental health ............................................ 4-28

mobility....................................................... 3-2

psychosocial factors ................................. 4-29

qualitative analysis ................................... 4-29

robotics ....................................................... 3-2

statistics....................................................... 6-1

women ...................................................... 4-28

SSI ................................................................. 4-31

Statistics

Model Burn Injury Systems ........... 2-19—2-24

Model SCI Systems ........................ 2-25—2-40

Model TBI Systems ........................ 2-41—2-60

statistics........................................... 2-69, 4-40

brain injuries............................................... 6-8

burns ......................................................... 2-19

data management...................................... 2-19

databases .......................................... 2-7, 2-90

information resources............................... 2-30

managed care............................................ 2-90

spinal cord injuries ..................................... 6-1

stroke .......................................................... 2-7

Stress disorders ............................................. 2-20

Stroke

alternative medicine ................................. 2-88

brain injuries ............................................. 3-45

databases .................................................... 2-7

electrical stimulation................................. 2-81

medical rehabilitation ............................... 2-83

motor function .......................................... 2-77

orthotics .................................................... 3-34

paralysis .................................................. 2-100

physical therapy ....................................... 2-73

rehabilitation ............................................. 3-45

rehabilitation engineering......................... 3-45

robotics ..................................................... 3-12

statistics....................................................... 2-7

Students

children ..................................................... 3-64

communication devices ............................ 3-92

computer applications .............................. 3-64

math skills ....................................... 3-86, 3-92

tests ........................................................... 3-92

visual impairments ................3-78, 3-86, 3-92

Students with disabilities

assistive technology ................................. 8-11

community integration ............................... 8-4

computer applications .............................. 3-93

education .................................................... 8-4

information technology ............................ 1-17

learning disabilities ......................... 3-93, 8-11

literacy ...................................................... 3-56

math skills ................................................. 3-93

needs assessment ...................................... 3-56

school-to-work transition ......................... 4-15
A-20 Subject Index

training...................................................... 1-17

Substance abuse

substance abuse ........................................ 2-96

abuse ........................................................... 4-9

brain injuries ..................................... 2-54, 4-9

community-based services ......................... 4-9

depression ................................................... 4-9

emergent disabilities................................. 1-10

HIV ........................................................... 1-10

Internet...................................................... 1-10

Supported employment ................................ 1-20

Surveys

computer applications ............................ 2-103

consumers................................................. 1-25

housing ..................................................... 4-33

speech recognition ................................. 2-103

Systems change

Technology assistance programs .... Chapter 9

Teachers ........................................................ 4-45

Technical assistance

ADA: ADA Technical Assistance

Programs ......................................... Chapter 7

AT: Technology Assistance

Programs ......................................... Chapter 9

information technology ............................ 3-25

Technology

Technology for Access and

Function........................................... Chapter 3

Technology assistance programs .... Chapter 9

consumers................................................... 6-5

vocational rehabilitation ............................. 6-5

Technology transfer

self employment ....................................... 1-23

Telecommunications

ADA Technical Assistance

Programs ......................................... Chapter 7

telecommunications.................................. 1-30

Telerehabilitation ............................... 2-47, 2-101

Television...................................................... 3-50

Tests

communication devices ............................ 3-92

evaluation ................................................. 4-23

math skills ................................................. 3-92

outcome .................................................... 4-23

students ..................................................... 3-92

visual impairments ................................... 3-92

vocational rehabilitation ........................... 4-23

Tetraplegia .................................................... 2-13

Thrombosis ................................................... 2-71

Training

ADA Technical Assistance

Programs ......................................... Chapter 7

Capacity Building for Rehabilitation

Research Training............................ Chapter 8

Technology assistance programs .... Chapter 9

amputations .............................................. 3-38

community-based services ....................... 4-24

computers ................................................. 3-48

daily living................................................ 4-24

databases .................................................. 3-15

deaf-blind ................................................. 3-48

housing ..................................................... 3-15

information referral .................................. 3-15

information technology ......... 1-14, 1-17, 3-25

prosthetics ................................................. 3-38

psychiatric disabilities .............................. 4-24

remote service delivery ............................ 1-11

research..................................................... 1-11

students with disabilities ........................... 1-17

technical assistance .................................. 3-25

universal design.......................................... 6-7

vocational rehabilitation ........................... 3-48

Transportation

ADA Technical Assistance

Programs ......................................... Chapter 7

accessibility .............................................. 2-49

brain injuries ............................................. 3-55

driving ...................................................... 3-55

evaluation techniques ............................... 3-55

rehabilitation ............................................... 1-8

rehabilitation engineering............... 3-18, 3-62

remote service delivery .............................. 1-8
Subject Index A-21

rural services............................................... 1-8

safety ........................................................ 3-18

seating....................................................... 3-18

virtual reality............................................. 3-55

wheelchair design ........................... 3-18, 3-62

TTY ............................................................... 3-73

Universal access ............................................. 3-7

Universal design

accessibility ................................................ 7-2

education .................................................. 6-14

information technology .............................. 7-2

technical assistance .................................... 7-2

training........................................................ 6-7

Utilization

ADA Technical Assistance

Programs ......................................... Chapter 7

Virtual reality ....................................... 1-33, 3-55

Violence

Model Burn Injury Systems ........... 2-19—2-24

Model SCI Systems ........................ 2-25—2-40

Model TBI Systems ........................ 2-41—2-60

Visual impairments

visual impairments ................................... 3-87

assistive technology ................................. 8-10

blindness 1-6, 1-13, 3-23, 3-50, 3-77, 3-91, 4-

35

braille ..................................... 3-61, 3-82, 3-83

children ..................................................... 4-14

communication devices .................. 3-75, 3-92

computer applications .................... 3-76, 3-83

computers ................................................. 3-61

deafness .................................................... 3-75

ethnic groups ............................................ 4-14

family life ................................................. 4-14

information technology ............................ 1-13

Internet...................................................... 3-50

low vision ................................................. 8-10

maps ......................................................... 3-91

math skills .............................. 3-83, 3-86, 3-92

mathematics .............................................. 3-43

music ........................................................ 3-82

software .................................................... 3-43

speech recognition ................................... 3-76

students..................................3-78, 3-86, 3-92

television .................................................. 3-50

tests ........................................................... 3-92

Vocational rehabilitation

Model Burn Injury Systems ........... 2-19—2-24

Model SCI Systems ........................ 2-25—2-40

Model TBI Systems ........................ 2-41—2-60

assistive technology ................................. 8-23

clinical supervision ..................................... 8-9

computers ................................................. 3-48

consumers................................................... 6-5

deaf-blind ................................................. 3-48

evaluation ................................................. 4-23

independent living .................................... 8-23

outcome .......................................... 4-23, 8-23

research fellowships ................................. 8-23

service delivery .......................................... 8-9

technology .................................................. 6-5

tests ........................................................... 4-23

training...................................................... 3-48

Walking aids ................................................... 3-9

Wheelchair design

mobility..................................................... 3-94

rehabilitation engineering............... 3-18, 3-62

safety ........................................................ 3-18

seating....................................................... 3-18

transportation .................................. 3-18, 3-62

wheelchairs ............................................... 3-94

Wheelchair transportation safety .................. 3-19

Wheelchairs

brain injuries ............................................. 2-57

measurement............................................. 2-70

mobility..................................................... 3-94

posture ...................................................... 3-44

rehabilitation engineering......................... 3-44

robotics ..................................................... 2-57

seating....................................................... 2-70

service delivery ........................................ 2-57

wheelchair design ..................................... 3-94

Wireless technologies ............................ 3-7, 3-67

Women
A-22 Subject Index

disability management.............................. 2-97

mental health ............................................ 4-28

mentorship ................................................ 1-15

spinal cord injuries ................................... 4-28

Youth

behavior disorders ...................................... 4-2

children ....................................................... 4-2

communication ......................................... 2-84

developmental disabilities .......................... 4-2

education ........................................ 2-84, 4-50

employment .................................... 4-31, 4-50

epilepsy..................................................... 4-17

family life ................................................. 4-12

Internet...................................................... 2-84

intervention............................................... 4-17

multimedia ................................................ 4-50

outcome .................................................... 4-17

parenting with a disability ........................ 4-12

parents ...................................................... 4-12

physical disabilities .................................. 2-84

reading skills............................................. 2-84

remote service delivery ............................ 4-17

role models ............................................... 4-50

rural services............................................. 4-17

school-to-work transition ......................... 4-50

SSI............................................................. 4-31
Grantees

Grantees B-1

ATRC H224A10023 Honolulu, HI 9-33

AbleLink Technologies, Inc. ED-01-CO-0126 Colorado Springs, CO 4-51

AbleLink Technologies, Inc. ED-01-PO-3664 Colorado Springs, CO 4-52

AbleLink Technologies, Inc. ED-01-PO-3665 Colorado Springs, CO 4-53

AbleLink Technologies, Inc. H133S020010 Colorado Springs, CO 3-67

AbleLink Technologies, Inc. H133S020013 Colorado Springs, CO 3-66

Adaptive Environments Center, Inc. H133D010211 Boston, MA 7-2

Adherence Technologies Corporation H133S020033 Purcellville, VA 2-103

Al Copolillo, PhD, OTR/L H133F020028 Richmond, VA 8-10

Alabama Department of Rehabilitation

Services H224A30009 Montgomery, AL 9-20

Alaska Department of Labor and

Workforce Development H224A990001 Anchorage, AK 9-21

Albert Einstein Healthcare Network H133A020505 Philadelphia, PA 2-56

Alfred I. duPont Hospital for Children H133G010041 Wilmington, DE 2-68

Alfred I. duPont Institute of the

Nemours Foundation H133G000117 Wilmington, DE 3-42

Alliant University Foundation H133B970016 San Diego, CA 1-2

Amazability, Inc. H133S020107 Waban, MA 3-76

American Foundation for the Blind H133G010183 New York, NY 4-35

AnthroTronix, Inc. H133S020046 College Park, MD 2-101

Arizona University Center on

Disabilities H133B980049 Flagstaff, AZ 5-1

Arkansas Rehabilitation Services H224A90020 Little Rock, AR 9-24

Arkansas Rehabilitation Services H224C010009 Little Rock, AR 9-4

Arlyn Toolworks H133S020121 Carlisle, PA 3-80

ATTAIN Inc. H224A00027 Indianapolis, IN 9-36

Automated Functions, Inc. H133S020108 Falls Church, VA 3-86

AVP/CEDDARS/GSAT H224A40003 Mangilao, GU 9-32

Baltimore Regional Burn Center H133A020101 Baltimore, MD 2-20

Barron Associates, Inc. ED-01-CO-0123 Charlottesville, VA 3-95

Baylor College of Medicine H133A980073 Houston, TX 2-18

Baylor College of Medicine H133G000226 Houston, TX 2-97

Baylor College of Medicine H133P020003 Houston, TX 8-29

Beth Israel Medical Center H133G000120 New York, NY 2-88

Boston University H133G020108 Boston, MA 2-78

Boston University H133P990003 Boston, MA 8-20

Boston University H133B990023 Boston, MA 4-6

Boston University H133G020181 Boston, MA 5-11

Boston University H133B990005 Boston, MA 5-4

Boston University H133G010113 Boston, MA 1-21

Boston University H133P020011 Boston, MA 8-22

Boston University H133P970014 Boston, MA 8-19

Boston University H133P990004 Boston, MA 8-21

Boston University Medical Center

Hospital H133N000024 Boston, MA 2-31

Brain Injury Association of America,

Inc. H133A010607 Alexandria, VA 3-32
B-2 Grantees

Brain Injury Association of America,

Inc. H133G020215 Alexandria, VA 1-28

Brown University H133G010094 Providence, RI 2-96

California Department of Rehabilitation H224A30008 Sacramento, CA 9-25

California Foundation for Independent

Living Centers (CFILC) H133A010702 Sacramento, CA 3-24

California State University H133G980119 Los Angeles, CA 4-14

Case Western Reserve University H133G020029 Cleveland, OH 2-92

Center for an Accessible Society

Exploding Myths, Inc. H133A980045 San Diego, CA 6-4

Center for Applied Science and

Engineering H133G990115 Wilmington, DE 3-41

Center for Applied Science and

Engineering H224A10005 Wilmington, DE 9-28

Center for Essential Management

Services H133G000195 Jericho, NY 1-24

Center for International Rehabilitation H133E980031 Chicago, IL 3-10

CESSI ED-02-CO-0008 McLean, VA 7-12

CESSI H133G020116 McLean, VA 1-29

Charlotte Mecklenburg Hospital

Authority H133A020522 Charlotte, NC 2-53

Chemica Technologies, Inc. H133S020011 Bend, OR 2-102

Cherry Engineering Support Services,

Inc ED-00-CO-0079 McLean, VA 8-33

Children’s Hospital H224A00036 Boston, MA 9-43

Children’s Hospital Medical Center H133G000134 Cincinnati, OH 4-37

Children’s Hospital Medical Center H133G990069 Cincinnati, OH 4-36

Cleveland State University H133G990036 Cleveland, OH 1-27

CNMI Governor’s Council on

Developmental Disabilities H224A40007 Saipan, MP 9-57

Connecticut Department of Social

Services H224A20013 Hartford, CT 9-27

Conwal, Inc. ED-98-CO-0004 McLean, VA 8-32

Cornell University H133A970005 Ithaca, NY 1-18

Cornell University H133B980038 Ithaca, NY 1-9

Cornell University H133D010205 Ithaca, NY 7-3

Cornell University H133G020117 Ithaca, NY 5-13

Craig Hospital H133A011108 Englewood, CO 2-12

Craig Hospital H133A020510 Englewood, CO 2-43

Craig Hospital H133G020182 Englewood, CO 2-67

Craig Hospital H133N000001 Englewood, CO 2-28

CreateAbility Concepts, Inc. ED-01-CO-0122 Fort Collins, CO 3-88

CreateAbility Concepts, Inc. H133S020149 Fort Collins, CO 3-68

CreateAbility Concepts, Inc. H133S020155 Fort Collins, CO 3-69

DakotaLink H224A20019 Rapid City, SD 9-65

Dancing Dots Braille Music

Technology, LP H133S020081 Valley Forge, PA 3-82
Grantees B-3

Dartmouth College H133G000136 Lebanon, NH 2-86

Division of Vocational Rehabilitation H224A30014 Pago Pago, American Samoa 9-22

Duke University H133E980026 Durham, NC 3-16

Duke University H133A010401 Durham, NC 3-29

Education Development Center, Inc. H133G000204 Newton, MA 3-54

Emory University H133A980028 Atlanta, GA 2-44

Eugene Research Institute H133G010162 Eugene, OR 3-58

FAAST, Inc. H224A000001 Tallahassee, FL 9-30

FILIUS Institute H224A70001 San Juan, PR 9-62

Foundation for Rehabilitation

Education and Research H133G990137 Rolling Meadows, IL 4-23

Frank G. Bowe, PhD H133F020002 Hempstead, NY 8-8

Future of Technology and Health ED-01-CO-0124 Iowa City, IA 3-89

Futures in Rehabilitation Management H133S020056 Springfield, IL 1-31

Gallaudet University H133E010107 Washington, DC 3-4

Garrett Technologies, Inc. H133S020020 Skokie, IL 3-72

Gary M. Bedell, PhD, OT H133F020022 Boston, MA 8-5

George Mason University H133G000142 Fairfax, VA 4-43

Georgetown University H133B001200 Washington, DC 2-5

Georgia Centers for Advanced

Telecommunications Technology

(GCATT) H133E010804 Atlanta, GA 3-7

Georgia Department of Human

Resources H224A10001 Atlanta, GA 9-31

Georgia Institute of Technology

Center for Assistive Technology &

Environmental Access H133E020720 Atlanta, GA 3-8

Georgia Institute of Technology H133G010193 Atlanta, GA 3-44

Georgia Institute of Technology H133G020240 Atlanta, GA 2-70

Georgia Institute of Technology H133A000405 Atlanta, GA 3-25

Georgia Institute of Technology H224B020002 Atlanta, GA 6-16

Georgia Tech Research Corporation H133D010207 Atlanta, GA 7-5

Health and Disability Working Group

Boston University H133A990014 Boston, MA 2-14

Heidi Silver-Pacuilla H133F020025 Tucson, AZ 8-11

HeiTech Services, Inc. ED-02-CO-002 Lanham, MD 6-18

Howard University H133A990020 Washington, DC 4-11

Howard University H133B000903 Washington, DC 2-6

IATP H224A90038 Springfield, IL 9-35

IDRT, Inc. H133S020048 Silver Spring, MD 3-74

IDRT, Inc. H133S020049 Silver Spring, MD 3-73

Illinois Assistive Technology Project H224C010022 Springfield, IL 9-5

InfoUse ED-01-CO-0127 Berkeley, CA 4-50

InfoUse H224B990001 Berkeley, CA 9-1

Inland Northwest Health Service H133G020006 Spokane, WA 4-44

Institute for Community Inclusion H133B980037 Boston, MA 1-5

The Institute for Rehabilitation and

Research (TIRR) H133A011501 Houston, TX 6-12
B-4 Grantees

The Institute for Rehabilitation and

Research (TIRR) H133G010152 Houston, TX 2-98

The Institute for Rehabilitation and

Research (TIRR) H133N000004 Houston, TX 2-38

The Institute for Rehabilitation and

Research (TIRR) H133B990014 Houston, TX 2-10

The Institute for Rehabilitation and

Research (TIRR) H133D010210 Houston, TX 7-7

Intelligent Automation, Inc. ED-02-R-0012 Rockville, MD 3-90

InvoTek, Inc. H133S020106 Alma, AR 3-63

Iowa Department for the Blind H133A010104 Des Moines, IA 1-13

Iowa University Center for Excellence

in Disabilities H224A00028 Iowa City, IA 9-37

James Herbert, PhD H133F020007 University Park, PA 8-9

Jason D. Andrew, PhD H133F020004 Osage Beach, MO 8-7

JFK Johnson Rehabilitation Institute H133A020518 Edison, NJ 2-50

KATS Network Coordinating Center H224A90002 Louisville, KY 9-39

Kay Schriner, PhD H133F020010 Fayetteville, AR 8-3

Kentucky Department of Vocational

Rehabilitation H224C010021 Frankfort, KY 9-7

Kessler Medical Rehabilitation

Research and Education Corporation

(KMRREC) H133A011403 West Orange, NJ 6-8

Kessler Medical Rehabilitation

Research and Education Corporation

(KMRREC) H133A980030 West Orange, NJ 2-51

Kessler Medical Rehabilitation

Research and Education Corporation

(KMRREC) H133G000073 West Orange, NJ 3-55

Kessler Medical Rehabilitation

Research and Education Corporation

(KMRREC) H133N000022 West Orange, NJ 2-34

LATAN H224A10028 Baton Rouge, LA 9-40

Learnimation ED-02-R-0012 New York, NY 3-93

Lincoln Laboratories ED-01-CO-0310 College Ward, UT 3-94

Logical Software Solutions H133S020130 Plano, TX 3-83

Los Amigos Research and Education

Institute, Inc. (LAREI) H133E020732 Downey, CA 3-2

Los Amigos Research and Education

Institute, Inc. (LAREI) H133B980024 Downey, CA 2-3

Los Amigos Research and Education I

nstitute, Inc. (LAREI) H133E003001 Downey, CA 3-1

Los Amigos Research and Education

Institute, Inc. (LAREI) H133G000004 Downey, CA 3-34

Los Amigos Research and Education

Institute, Inc. (LAREI) H133G010160 Downey, CA 2-64
Grantees B-5

Los Amigos Research and Education

Institute, Inc. (LAREI) H133N000029 Downey, CA 2-26

Louisiana Department of Health and

Hospitals H224C010024 Baton Rouge, LA 9-8

Louisiana State University H133G020211 New Orleans, LA 4-26

Louisiana State University Health

Sciences Center H133G990169 New Orleans, LA 4-25

Lucile Packard Children’s Hospitals

at Stanford H133G990103 Palo Alto, CA 3-36

Lucile Packard Children’s Hospitals at

Stanford H133G990087 Palo Alto, CA 3-37

Maine CITE Coordinating Center H224A90047 Augusta, ME 9-41

Marquette University H133E020729 Milwaukee, WI 3-22

Marquette University H133G010069 Milwaukee, WI 2-99

Marquette University H133P020004 Milwaukee, WI 8-31

Mary F. Hayden, PhD H133F020012 Minneapolis, MN 8-6

Maryland Governor’s Office for

Individuals with Disabilities H224A90019 Baltimore, MD 9-42

Massachusetts Institute of Technology H133A000500 Cambridge, MA 6-7

Matheny School and Hospital H133G010153 Peapack, NJ 4-34

Mayo Medical Center H133A020507 Rochester, MN 2-47

Medical College of Wisconsin H133G020112 Milwaukee, WI 2-100

Medical University of South Carolina H133G020218 Charleston, SC 5-14

Medicine Rules Corporation H133S020032 East Setauket, NY 3-79

MedStar Research Institute H133E990007 Washington, DC 3-5

MedStar Research Institute H133B970003 Washington, DC 2-4

Meeting the Challenge, Inc. H133D010004 Colorado Springs, CO 7-9

Meeting the Challenge, Inc. H133G000221 Colorado Springs, CO 6-13

Methodist Rehabilitation Center H133A020514 Jackson, MS 2-48

Methodist Rehabilitation Center H133A980067 Jackson, MS 2-15

Michigan Disability Rights Coalition H224A50009 East Lansing, MI 9-44

Michigan Disability Rights Coalition H224C010015 East Lansing, MI 9-11

Mississippi Department of

Rehabilitation Services H224A00032 Jackson, MS 9-46

Mississippi State University H133A020701 Mississippi State, MS 1-16

Mississippi State University H133B010101 Mississippi State, MS 1-6

Missouri Department of Labor and

Industrial Relations H224A30015 Independence, MO 9-47

Moss Rehabilitation Research Institute H133G020052 Philadelphia, PA 2-95

MossRehab H133A000101 Philadelphia, PA 2-16

Motion Control, Inc. H133S020006 Salt Lake City, UT 3-84

Mount Sinai School of Medicine H133G990220 New York, NY 2-90

Mount Sinai School of Medicine H133G990221 New York, NY 2-89

Mount Sinai School of Medicine H133P000001 New York, NY 8-26

Mount Sinai School of Medicine H133N000027 New York, NY 2-35

Mount Sinai School of Medicine H133A020501 New York, NY 2-52

Mount Sinai School of Medicine H133B980013 New York, NY 4-9
B-6 Grantees

Nebraska Department of Education H224A90040 Lincoln, NE 9-49

Neighborhood Legal Services, Inc. H224B020004 Buffalo, NY 6-17

Nevada Rehabilitation Division H224A00037 Carson City, NV 9-50

New Jersey Protection and

Advocacy, Inc. H224A20007 Trenton, NJ 9-52

New Mexico State Department of

Education H224A00017 Santa Fe, NM 9-53

New York State Office of Advocate for

Persons with Disabilities H224A00041 Albany, NY 9-54

North Carolina Department of Health

and Human Services H224A00010 Raleigh, NC 9-55

North Carolina State University H133E990002 Raleigh, NC 3-17

North Carolina State University H133G000025 Raleigh, NC 6-14

North Carolina State University

School of Design H133G980060 Raleigh, NC 3-57

North Dakota Department of Human

Services H224A30003 Cavalier, ND 9-56

Northern Arizona University H224A40002 Phoenix, AZ 9-23

Northern Arizona University H224C010008 Phoenix, AZ 9-3

Northwestern University H133E980023 Chicago, IL 3-9

Northwestern University H133P990006 Chicago, IL 8-16

Northwestern University H133P980014 Chicago, IL 8-15

Ohio State University H133G980100 Columbus, OH 2-93

Ohio State University Research

Foundation H224A40001 Columbus, OH 9-58

Ohio Valley Center for Brain Injury

Prevention and Rehabilitation H133A020503 Columbus, OH 2-54

Oklahoma State University H224A50007 Stillwater, OK 9-59

Omegaware, Inc. H133S020071 Swartz Creek, MI 3-77

ORC Macro ED-02-000128 Silver Spring, MD 6-19

Oregon Disabilities Commission H224A50002 Salem, OR 9-60

Oregon Health and Science University H133A980027 Portland, OR 2-55

Oregon Health and Science University H133G020125 Portland, OR 4-40

Oregon Health and Science University H133G020231 Portland, OR 4-41

Oregon Health and Science University H133G010040 Portland, OR 4-39

Oregon Health and Science University H133B990019 Portland, OR 2-9

Oregon Health and Science University H133D010002 Portland, OR 7-11

Oregon Health and Science University H133G000154 Portland, OR 2-94

P.R. Lind and Company H133S020007 Centerville, IA 1-32

Photozig, Inc. H133S020030 San Jose, CA 3-65

Pimjai Sudsawad, ScD, OTR H133F020023 Milwaukee, WI 8-12

Play-Based Technologies, LLC H133S020118 Denver, CO 4-46

Portland State University H133B990025 Portland, OR 4-10

Public Health Institute H133D010209 Berkeley, CA 7-10

Rancho Los Amigos H133G020002 Downey, CA 2-65

Ready! Set! Sign! ! LLC H133S020051 Arlington, VA 3-85
Grantees B-7

Rehabilitation Engineering and

Assistive Technology Society of

North America (RESNA) H224B020001 Arlington, VA 9-2

Rehabilitation Engineering and

Assistive Technology Society of

North America (RESNA) H224C000200 Arlington, VA 9-16

Rehabilitation Institute of Chicago H133G010066 Chicago, IL 2-73

Rehabilitation Institute of Michigan H133G020128 Detroit, MI 2-80

Rehabilitation Institute Research

Corporation H133B980021 Chicago, IL 2-7

Rehabilitation Institute Research

Corporation H133E020724 Chicago, IL 3-12

Rehabilitation Institute Research

Corporation H133G010058 Chicago, IL 2-74

Rehabilitation Institute Research

Corporation H133G010098 Chicago, IL 3-47

Rehabilitation Institute Research

Corporation H133G990046 Chicago, IL 2-71

Rehabilitation Institute Research

Corporation H133G990074 Chicago, IL 3-46

Rehabilitation Institute Research

Corporation H133G980052 Chicago, IL 3-45

Research Solutions International SBIR 01-09 Menomonie, WI 1-34

Rhode Island Department of Human

Services H224A30012 Providence, RI 9-63

RTI International ED-01-CO-0052 Research Triangle Park, NC 6-20

San Francisco State University H133G000024 San Francisco, CA 3-38

San Francisco State University H133G020184 San Francisco, CA 4-15

Santa Clara Valley Medical Center

(SCVMC) H133N000007 San Jose, CA 2-27

Santa Clara Valley Medical Center

(SCVMC) H133A020524 San Jose, CA 2-42

Sargent College H133G020092 Boston, MA 1-22

Science Applications International

Corporation H133G010028 Arlington, VA 3-61

Sendero Group, LLC H133A011903 Davis, CA 3-23

Shepherd Center, Inc. H133G010009 Atlanta, GA 2-69

Shepherd Center, Inc. H133N000005 Atlanta, GA 2-30

Smith-Kettlewell Eye Research Institute H133E001002 San Francisco, CA 3-3

Soft Touch/kidTECH, Inc. H133S020148 Bakersfield, CA 3-64

Southwest Educational Development

Laboratory H133A990008 Austin, TX 6-11

Spaulding Rehabilitation Hospital H133A020513 Boston, MA 2-45

SRI International H133G000047 Menlo Park, CA 3-35

State of Iowa Department for the Blind H133G020196 Des Moines, IA 3-48

State of Maryland H224C000009 Baltimore, MD 9-9

State of Maryland Office of

Individuals with Disabilities H224C010016 Baltimore, MD 9-10
B-8 Grantees

State of Minnesota Department of

Administration H224A90041 St. Paul, MN 9-45

State University at Stony Brook H133G990058 Stony Brook, NY 2-91

State University of New York (SUNY)

at Buffalo H133A990010 Buffalo, NY 6-9

State University of New York (SUNY)

at Buffalo H133E980024 Buffalo, NY 3-14

State University of New York (SUNY)

at Buffalo H133E990005 Buffalo, NY 3-15

State University of New York (SUNY)

at Buffalo H133G010132 Buffalo, NY 2-87

SVR, Inc. H133S020099 Alexandria, VA 4-48

Syracuse University H133A990001 Syracuse, NY 6-10

Syracuse University H133G000028 Syracuse, NY 1-25

Talking Lights, LLC H133S020043 Boston, MA 3-75

Temple University H224A20006 Philadelphia, PA 9-61

Temple University H224C000001 Philadelphia, PA 9-12

Temple University H224C010025 Philadelphia, PA 9-13

Teresa Grossi, PhD H133F020013 Bloomington, IN 8-4

Texas Southern University H133A990024 Houston, TX 8-2

Thomas Jefferson University H133N000023 Philadelphia, PA 2-36

Three Rivers Holding, LLC H133S020103 Mesa, AZ 3-62

The Thresholds H133G990155 Chicago, IL 1-20

Through the Looking Glass H133A980001 Berkeley, CA 6-2

Through the Looking Glass H133G010054 Berkeley, CA 4-13

Through the Looking Glass H133G990130 Berkeley, CA 4-12

Touch Graphics ED-01-CO-0125 Brooklyn, NY 3-91

Touch Graphics ED-01-PO-3667 Brooklyn, NY 3-92

Touch Graphics H133S020147 Brooklyn, NY 3-78

TransCen, Inc. H133D010212 Rockville, MD 7-4

TranXecute, Inc. H133S020027 Gladwyne, PA 3-81

TTAP H224A010002 Nashville, TN 9-66

United Cerebral Palsy Associations,

Inc.H133A980052 Atlanta, GA 6-5

University Legal Services H224A30001 Washington, DC 9-29

University of Alabama at Birmingham H133A020509 Birmingham, AL 2-41

University of Alabama/Birmingham H133B980016 Birmingham, AL 2-1

University of Alabama/Birmingham H133G000072 Birmingham, AL 2-61

University of Alabama/Birmingham H133N000016 Birmingham, AL 2-25

University of Alabama/Birmingham H133A011201 Birmingham, AL 6-1

University of Arkansas H133G010156 Little Rock, AR 1-19

University of Arkansas/Little Rock H133B010501 Little Rock, AR 1-1

University of Arkansas/Pine Bluff H133G000192 Pine Bluff, AR 2-62

University of California H133P020009 Berkeley, CA 8-13

University of California/Berkeley H133G000083 Berkeley, CA 5-6

University of California - Davis H133G020137 Davis, CA 2-63

University of California/Davis H133B980008 Davis, CA 2-2
Grantees B-9

University of California/San Francisco H133B980045 San Francisco, CA 5-2

University of Colorado Health

Sciences Center H224A40014 Denver, CO 9-26

University of Colorado Health

Sciences Center H133G980121 Denver, CO 4-16

University of Colorado Health

Sciences Center H133A020402 Denver, CO 2-19

University of Delaware H133G990182 Wilmington, DE 3-40

University of Delaware H133G020103 Newark, DE 3-39

University of Florida H133E010106 Gainesville, FL 3-6

University of Florida College of Heath

Professions H133G990500 Gainsville, FL 4-17

University of Florida H133G000227 Gainesville, FL 5-7

University of Florida H133P020005 Gainesville, FL 8-14

University of Hawaii at Manoa H133B980043 Honolulu, HI 1-3

University of Idaho H224A20017 Moscow, ID 9-34

University of Illinois at Chicago H133G020146 Chicago, IL 4-21

University of Illinois at Chicago H133E020715 Chicago, IL 3-11

University of Illinois at Chicago H133G020217 Chicago, IL 4-22

University of Illinois at Chicago H133G020027 Chicago, IL 5-10

University of Illinois/Chicago H133G010093 Chicago, IL 4-19

University of Illinois/Chicago H133G010139 Chicago, IL 5-9

University of Illinois/Chicago H133G990110 Chicago, IL 5-8

University of Illinois/Chicago H133G990143 Chicago, IL 2-72

University of Illinois/Chicago H133B980046 Chicago, IL 4-4

University of Illinois/Chicago H133D010203 Chicago, IL 7-6

University of Illinois/Chicago H133P000005 Chicago, IL 8-17

University of Illinois/Chicago H133G010033 Chicago, IL 4-20

University of Illinois/Chicago H133G010136 Chicago, IL 4-18

University of Illinois/Chicago H133B000700 Chicago, IL 8-1

University of Iowa H133A011803 Iowa City, IA 1-14

University of Iowa H133A021801 Iowa City, IA 3-26

University of Iowa College of Law H133B010102 Iowa City, IA 1-4

University of Kansas H133A010602 Lawrence, KS 3-27

University of Kansas H133B980050 Lawrence, KS 5-3

University of Kansas H133P970004 Lawrence, KS 8-18

University of Kansas H224A30013 Parsons, KS 9-38

University of Kansas H133A980048 Lawrence, KS 6-6

University of Kansas Center for

Research, Inc. H133B000500 Lawrence, KS 4-5

University of Kansas Center for

Research, Inc. H133G010102 Lawrence, KS 3-49

University of Kansas Center for

Research, Inc. H224C000011 Parsons, KS 9-6

University of Kansas Medical Center H133G000152 Kansas City, KS 4-24

University of Maryland H133G010111 Baltimore, MD 2-77

University of Maryland/

Baltimore County H133G000068 Baltimore, MD 2-75
B-10 Grantees

University of Maryland/

Baltimore County H133G010023 Baltimore, MD 2-76

University of Massachusettes, Boston H133A010106 Boston, MA 1-15

University of Massachusetts H133A021503 Boston, MA 5-5

University of Medicine & Dentistry of

New Jersey H133P020012 West Orange, NJ 8-25

University of Miami H133A011115 Miami, FL 2-13

University of Miami H133N000017 Miami, FL 2-29

University of Michigan H133E980007 Ann Arbor, MI 3-13

University of Michigan H133G000038 Ann Arbor, MI 4-27

University of Michigan H133G000058 Ann Arbor, MI 2-79

University of Michigan H133N000009 Ann Arbor, MI 2-32

University of Michigan H133P990014 Ann Arbor, MI 8-23

University of Michigan H133G020060 Ann Arbor, MI 4-28

University of Minnesota H133G010077 Minneapolis, MN 2-81

University of Minnesota H133G020145 Minneapolis, MN 2-83

University of Minnesota H133G000201 Minneapolis, MN 4-31

University of Minnesota H133G010064 Minneapolis, MN 2-82

University of Minnesota H133G020037 Minneapolis, MN 5-12

University of Minnesota H133B980047 Minneapolis, MN 4-7

University of Missouri H133G020065 Columbia, MO 4-32

University of Missouri/Columbia H133D010201 Columbia, MO 7-8

University of Missouri/Columbia H133N000012 Columbia, MO 2-33

University of Missouri/Columbia H133A980008 Columbia, MO 2-49

University of Missouri/Columbia H133B980022 Columbia, MO 2-8

University of Missouri/Columbia H133A011802 Columbia, MO 1-17

University of Missouri/Columbia H133P880009 Columbia, MO 8-24

University of Montana H133B970017 Missoula, MT 1-7

University of Montana H224A10002 Missoula, MT 9-48

University of Montana H133B030501 Missoula, MT 1-8

University of Montana H133G000189 Missoula, MT 1-23

University of New Hampshire H133G990501 Durham, NH 2-84

University of New Hampshire H133G000034 Durham, NH 4-33

University of New Hampshire H133G000150 Durham, NH 2-85

University of New Hampshire

Technology Partnership H224A10015 Concord, NH 9-51

University of North Carolina H133G000132 Chapel Hill, NC 1-26

University of North Carolina at

Chapel Hill H133G020133 Chapel Hill, NC 3-56

University of Oregon H133G010167 Eugene, OR 4-38

University of Pittsburgh H133A011107 Pittsburgh, PA 2-17

University of Pittsburgh H133A020502 Pittsburgh, PA 2-57

University of Pittsburgh H133A021916 Pittsburgh, PA 3-31

University of Pittsburgh H133G020159 Pittsburgh, PA 3-59

University of Pittsburgh H133N000019 Pittsburgh, PA 2-37

University of Pittsburgh H133E990001 Pittsburgh, PA 3-18

University of Pittsburgh H133P970013 Pittsburgh, PA 8-27
Grantees B-11

University of Pittsburgh H133E010302 Pittsburgh, PA 3-19

University of South Carolina

School of Medicine H224A60001 Columbia, SC 9-64

University of South Florida H133B980005 Tampa, FL 4-2

University of South Florida H133B990022 Tampa, FL 4-3

University of South Florida H133G010046 Lakeland, FL 3-43

University of Southern California H133G000062 Los Angeles, CA 2-66

University of Texas at Austin H224A20012 Austin, TX 9-67

University of Texas/Dallas H133A970023 Dallas, TX 2-21

University of Texas Medical Branch H133A020102 Galveston, TX 2-23

University of Texas Medical Branch H133G990052 Galveston, TX 4-42

University of Texas Medical Branch H133P990001 Galveston, TX 8-28

The University of Texas

Southwestern Medical Center H133A020526 Dallas, TX 2-58

The University of Texas

Southwestern Medical Center H133A020104 Dallas, TX 2-22

University of the Virgin Islands/UAP H224A50005 St. Thomas, USVI 9-68

University of Washington H224A30006 Seattle, WA 9-72

University of Washington H133D010306 Seattle, WA 6-15

University of Washington H133A020508 Seattle, WA 2-60

University of Washington H133B980017 Seattle, WA 2-11

University of Washington H133N000003 Seattle, WA 2-40

University of Washington H133A020103 Seattle, WA 2-24

University of Wisconsin/Madison H133E990006 Madison, WI 3-21

University of Wisconsin/Madison H133E980008 Madison, WI 3-20

University of Wisconsin - Milwaukee H133A010403 Milwaukee, WI 3-33

University of Wisconsin/Stout H133B980040 Menomonie, WI 1-12

University of Wyoming H224A60002 Laramie, WY 9-75

Utah State University H224A90051 Logan, UT 9-69

Utah State University H224C010013 Logan, UT 9-15

Utah State University H224C000004 Logan, UT 9-14

Vanderbilt University

School of Medicine H133G020097 Nashville, TN 3-60

Vcom3D, Inc. ED-01-Q-0003 Orlando, FL 1-33

Vcom3D, Inc. H133S020076 Orlando, FL 3-70

Vcom3D, Inc. H133S020104 Orlando, FL 3-71

Vermont Department of Aging and

Disabilities H224A00023 Waterbury, VT 9-70

Virginia Commonwealth University H133G020158 Richmond, VA 1-30

Virginia Commonwealth University H133A020516 Richmond, VA 2-59

Virginia Commonwealth University H133P970003 Richmond, VA 8-30

Virginia Commonwealth University H133B980036 Richmond, VA 1-11

Virginia Commonwealth University H133N000015 Richmond, VA 2-39

Virginia Department of Rehabilitative

Services (DRS) H224A00009 Richmond, VA 9-71

Virginia Department of Rehabilitative

Services (DRS) H224C000003 Richmond, VA 9-17
Virginia Department of Rehabilitative

Services (DRS) H224C010003 Richmond, VA 9-18

Visibooks, LLC H133S020101 Richmond, VA 4-49

VRGIS Corporation H133S020003 Morgantown, WV 3-87

Washington University H133A010701 St. Louis, MO 3-28

WaveBand Corporation H133S020009 Torrance, CA 4-45

Wayne State University H133G020151 Detroit, MI 4-30

Wayne State University H133G990219 Detroit, MI 4-29

Wayne State University and

Rehabilitation Institute of Michigan H133A020515 Detroit, MI 2-46

West Virginia University Center for

Excellence in Disabilities H224A20011 Morgantown, WV 9-73

The Western New York Independent

Living Project, Inc. H133B000002 Buffalo, NY 4-8

Western Oregon University H133A010610 Eugene, OR 3-30

WGBH Educational Foundation H133G990105 Boston, MA 3-50

WGBH Educational Foundation H133G000109 Boston, MA 3-51

WGBH Educational Foundation H133G010170 Boston, MA 3-52

WGBH Educational Foundation H133G020091 Boston, MA 3-53

Wisconsin Assistive Technology

Program H224A00013 Madison, WI 9-74

Wisconsin Department of Health and

Family Services (DHFS) H224C010017 Madison, WI 9-19

WisdomTools, Inc. H133S020141 Bloomington, IN 4-47

World Institute on Disability H133A990006 Oakland, CA 6-3

World Institute on Disability H133B970008 Oakland, CA 4-1

Wright State University H133B970018 Dayton, OH 1-10
Projects by State

Projects by State C-1

Alabama

Alabama Statewide Technology Access and

Response Pr oject(STAR) System for

Alabamians with Disabilities....................... 9-20

National Spinal Cord Injury Statistical

Center............................................................ 6-1

Rehabilitation Research and Training

Center on Secondary Conditions of Spinal

Cord Injury: Promoting General Health,

Well-Being, and Community Integration

Through Home-Based, Self-Directed Care ... 2-1

UAB Model Spinal Cord Injury Care

System......................................................... 2-25

UAB TBI Model System ............................ 2-41

Use of Propranolol to Manage Behavioral

Dysfunction and Agitation in Persons with

Postacute Brain Injury ................................. 2-61

Alaska

Assistive Technologies of Alaska................ 9-21

American Samoa

American Samoa Assistive Technology Service

(ASATS) Project ......................................... 9-22

Arizona

American Indian Rehabilitation Research

and Training Center ....................................... 5-1

The Arizona Loans for Assistive

Technology Program (AzLAT) ..................... 9-3

Arizona Technology Access Program

(AzTAP) ..................................................... 9-23

Assistive Technology and Adult Literacy:

Bridging the Gap for Adults with Learning

Disabilities................................................... 8-11

Development of a Collapsible Folding

Manual Wheelchair ..................................... 3-62

Arkansas

Absolute Head Pointing for Accessing

Assistive Devices ........................................ 3-63

An Analysis of ADA Title Protections

After the Sutton Decisions ............................ 8-3

Arkansas Increasing Capabilities Access

Network (ICAN)......................................... 9-24

Arkansas Technology Alternative Financing

Project (AFP) ................................................ 9-4

Developing a Rehabilitation Service

Delivery Model for Minority Farmers with

Disabilities................................................... 2-62

Reaching Hard of Hearing Workers in the

Mainstream: Implications for Consumers

and Service Professionals............................ 1-19

Rehabilitation Research and Training

Center on Improving Vocational

Rehabilitation Services for Individuals Who

 Are Deaf orHard of Hearing ........................ 1-1

California

Advanced Rehabilitation Research

Program: Ed Roberts Fellowship in

Disability Studies ........................................ 8-13

Assessing, Teaching, and Testing Young

Children with Disabilities............................ 3-64

Assistive Technology Act Data Collection

Project ........................................................... 9-1

California Assistive Technology System

(CATS)........................................................ 9-25

Cardiovascular Disease in Women with

Spinal Cord Injury and Its Effect on

Participation in Community Activities......... 2-64

Community Research for Assistive

Technology ................................................. 3-24

Daily Living Context and Pressure Sores in

Consumers with Spinal Cord Injury ............ 2-66

Development of a Transitional OrthoTherapeutic Walker (TOTWalker) for

Preschool Children with Physical

Disabilities................................................... 3-36

Disability and Rehabilitation Research

Project to Disseminate Independent Living

Research Information Through the Mass

Media to Persons with Disabilities ................ 6-4

Disability Rights and the Independent

Living Movement: The Formative Years

Nationwide .................................................... 5-6

Disability Statistics Rehabilitation Research

and Training Center ....................................... 5-2

The Effect of Ankle-Foot Orthotic Design

on Hemiplegic Gait ..................................... 3-34

Ideas for the New Millennium ....................... 6-3
C-2 Projects by State

Improving Muscular Use and CardioRespiratory Demand in Spinal-Cord-Injured

Patients Performing Functional

Electronically Stimulated Leg Cycle

Ergonometry ............................................... 2-63

The Learning and Transfer of Prosthetic

Control ........................................................ 3-38

Model Spinal Cord Injury System ............... 2-27

National Resource Center for Parents with

Disabilities..................................................... 6-2

Northern California Traumatic Brain Injury

Model System of Care ................................. 2-42

Occupational Therapy Evaluation and

Training Module to Guide Practice with

Parents with Physical Disabilities................ 4-13

Optimizing Assistive Technology Service

with Video Teleconferencing ...................... 3-37

Pacific Disability Business Technical

Assistance Center - Region IX .................... 7-10

Parents with Disabilities and Their

Adolescent Children .................................... 4-12

Personal Digital Memories for Individuals

with Memory and Cognitive Disabilities ..... 3-65

A Photo-Real Interactive Virtual Teacher .... 4-45

Quantified Custom Inserts: An Amputation

Prevention Program for Diabetic Patients .... 2-65

Regional Spinal Cord Injury Care System

of Southern California ................................. 2-26

Rehabilitation Research and Training

Center in Neuromuscular Diseases ................ 2-2

Rehabilitation Research and Training

Center on Aging with a Disability ................. 2-3

Rehabilitation Research and Training

Center on Personal Assistance Services

(PAS) ............................................................ 4-1

The Relationship Between Early

Experiences and Development in Young

Children with Severe Visual Impairments: A

Cross-Cultural Perspective .......................... 4-14

RERC on Spinal Cord Injury: Keep

Moving: Technologies to Enhance Mobility

and Function for Individuals with Spinal

CordInjury ..................................................... 3-2

Research and Training Center for Persons

Who Are Hard of Hearing or Late Deafened 1-2

Robust, Low-Cost, Refreshable Braille

Display ........................................................ 3-35

Role Models for Youth with Disabilities:

Career Exploration for Youth in

Transition .................................................... 4-50

Smith-Kettlewell Rehabilitation

Engineering Research Center ........................ 3-3

Technologies for Children with Orthopedic

Disabilities..................................................... 3-1

Total Community Immersion Model for

Postsecondary-Age Students with

Significant Disabilities: An Outcome-Based

Approach to Transition................................ 4-15

Wayfinding Technologies for People with

Visual Impairments: Research and

Development of an Integrated Platform ....... 3-23

Colorado

Colorado Assistive Technology Project

(CATP)........................................................ 9-26

Disability Law Knowledge Management

System: A One-Stop Clearinghouse for

Disability Information ................................. 6-13

Evaluation of Voucher Alternatives for

Early Intervention Developmental Disability

Services....................................................... 4-16

Internet-Based System for Transdisciplinary

Assessments of Infants and Toddlers........... 4-46

Lifetime Outcomes and Needs: Refining the

Understanding of Aging with Spinal Cord

Injury ........................................................... 2-12

Mortality and Life Expectancy After

Traumatic Brain Injury Rehabilitation ......... 2-67

NutraNet: An Internet-Based, Self-Directed

Multimedia Software System for Nutritional

Education, Planning, and Implementation

for Individuals with Mental Retardation ...... 4-51

Pocket Accessible Communication Enabler

(Pocket ACE): Providing Access to Palmtop

Computer Wireless Communication

Technologies for Individuals with Mental

Retardation .................................................. 3-67

Pocket Compass: A Palmtop ComputerBased Intelligent Aid for Individuals with

Mental Retardation to Increase

Independence and Self-Determination in

Decision Making ......................................... 4-52
Projects by State C-3

Pocket Money Coach: A Portable Money

Management System to Facilitate

Community Access for Individuals with

Mental Retardation ...................................... 3-66

Pocket Voyager: Making Palmtop

Computers Accessible to Individuals with

Mental Retardation ...................................... 4-53

QwikClick: An Intelligent Scanning

Keyboard That Maximizes the Capability

of Single-Switch Users................................ 3-88

Rocky Mountain Disability Business

Technical Assistance Center - Region VIII ... 7-9

The Rocky Mountain Regional Brain

Injury System (RMRBIS) ........................... 2-43

The Rocky Mountain Regional Spinal

Injury System .............................................. 2-28

SafetyNet: Supported Independence and

Safety for People with Cognitive

Disabilities................................................... 3-68

UCHSC Burn Model System Data

Coordination Center (BMS/DCC) .............. 2-19

VCAT On-Demand Transcription Services

for Individuals Who Are Deaf or Hard of

Hearing ....................................................... 3-69

Connecticut

Connecticut Assistive Technology Project .. 9-27

Delaware

Automatic Generation of Optimal Tactile

Graphics...................................................... 3-39

Delaware Assistive Technology Initiative

(DATI) ........................................................ 9-28

Investigation of the Dynamics of Spasticity

in Children with Cerebral Palsy .................. 2-68

Personalized Synthetic Speech Using

ModelTalker: Development and

Evaluation ................................................... 3-40

Specifying the Facilitative Effects of

Animation on the Understanding of Action

Word Representatives.................................. 3-41

An Upper Limb Orthosis for People with

Muscular Dystrophy .................................... 3-42

District of Columbia

Access to Rehabilitation and Empowerment

Opportunities for Minority Persons with

Disabilities..................................................... 2-6

The Consortium for Children and Youth

with Disabilities and Special Health Care

Needs. ........................................................... 2-5

Leadership Development: A New

Generation of Effective Leadership ............. 4-11

Managed Health Care for Individuals with

Disabilities..................................................... 2-4

Rehabilitation Engineering Research Center

on Hearing Enhancement .............................. 3-4

Rehabilitation Engineering Research Center

on Telerehabilitation ...................................... 3-5

University Legal Services AT Program for

the District of Columbia .............................. 9-29

Florida

The Development of a Tool to Enhance

Communications Between Blind and Sighted

Mathematicians, Students, and Teachers: A

Global Translation Appliance ...................... 3-43

Emergency Preparedness Training Software

with Universal Access................................. 3-70

Equiprecise Measurement for ICIDH-2

Classification of Activity: An Innovative

Solution for Evaluating the Worldwide

Incidence and Prevalence of Disability ......... 5-7

Florida Alliance for Assistive Service and

Technology (FAAST), Inc. ......................... 9-30

Home-Based Video-Counseling for Rural

At-Risk Adolescents with Epilepsy and

Their Parents: An Accessibility and Outcome

Analysis ...................................................... 4-17

Interdisciplinary Rehabilitation Research

Post-Doctoral Program ................................ 8-14

Pharmacological Management of

Dyslipidemia and Cardiovascular Disease in

Persons with Chronic Cervical SCI: A

Multicenter Collaborative Trial.................... 2-13

Rehabilitation Engineering Research Center

on Technology for Successful Aging ............ 3-6

Rehabilitation Research and Training Center

for Children’s Mental Health ......................... 4-3

Rehabilitation Research and Training Center

on Positive Behavior Support ........................ 4-2
C-4 Projects by State

SignSync: Software Tools for

Synchronizing Sign Language Access to

Digital Multimedia ...................................... 3-71

South Florida Regional Spinal Cord Injury

Model System ............................................. 2-29

Virtual Interview Exercises for Workplace

Success (VIEWS) ....................................... 1-33

Georgia

Aging After Spinal Cord Injury: Three

Decades of Longitudinal Research .............. 2-69

assitivetech.net - Internet Site on Assistive

Technology ................................................. 6-16

Development of Valid and Reliable

Measures of Postural Stability ..................... 2-70

Georgia Model Brain Injury System

(GAMBIS) .................................................. 2-44

Georgia Regional Spinal Cord Injury Care

System......................................................... 2-30

Georgia Tools for Life ................................. 9-31

Information Technology Technical

Assistance and Training Center

(ITTATC) .................................................... 3-25

Optimizing Posture, Trunk Control, and

Reach of Wheelchair Users ......................... 3-44

Rehabilitation Engineering Research Center

on Mobile Wireless Technologies for

Persons with Disabilities ............................... 3-7

Rehabilitation Engineering Research Center

on Workplace Accommodations ................... 3-8

Southeast Disability Business Technical

Assistance Center - Region IV ...................... 7-5

TECH CONNECTIONS: Improving the

Utilization of Existing and Emerging

Rehabilitation Technology in the State

Vocational Rehabilitation Program ................ 6-5

Guam

Guam System for Assistive Technology

(GSAT) ....................................................... 9-32

Hawaii

Assistive Technology Resource Centers of

Hawaii (ATRC)........................................... 9-33

National Center for the Study of

Postsecondary Educational Supports: A

Rehabilitation Research and Training

Center............................................................ 1-3

Idaho

Idaho Assistive Technology Project ............ 9-34

Illinois

Advanced Rehabilitation Research

Training ....................................................... 8-17

Advanced Rehabilitation Research

Training Project in Rehabilitation Services

Research ...................................................... 8-15

An Analysis of the Demography of Living

Standards, Health, and Poverty of Persons

with a Disability Living in Third World

Nations Based on Data from the World

Bank .............................................................. 5-9

Comparison of Two Employment Models

for Consumers with Severe Mental

Illness .......................................................... 1-20

Cost Effectiveness of a Computerized Oral

Reading Treatment for Aphasia................... 3-47

Determining the Effectiveness of a

Capacity-Building Program for Individuals

with Chronic Fatigue Syndrome ................. 4-18

Development of a Pressure Ulcer

Prevention Beliefs Instrument for Persons

with Spinal Cord Injury ............................... 2-74

Development of a Rehabilitator for Arm

Therapy After Brain Injury ......................... 3-45

The Development of a Valid System for

Measuring Rehabilitation Service

Outcomes .................................................... 4-23

Development of an Intelligent Therapeutic

Stretching Device for Stroke Patients .......... 2-73

Differences in Mental Health Service

Satisfaction Among Clients Interviewed by

Consumer and Non-Consumer Researchers

Using Computer-Assisted Personal

Interview (CAPI) Technology ..................... 5-10

Enabling Self-Determination for People

Living with AIDS ....................................... 4-22

Great Lakes Disability Business Technical Assistance Center - Region V ................................ 7-6
Projects by State C-5

Illinois Assistive Technology Project

(IATP) ......................................................... 9-35

Integration at Home: Strengthening Family

Relationships of Adults with Disabilities ..... 4-21

Integration of Fingerprint Technology with

Online Employment Screening Software to

Create a Product that is Operated by

Persons with Disabilities in Retail Outlets ... 1-31

Moving Out of the Nursing Home and to

the Community: Examining and Effecting

Social Change ............................................. 4-20

Neuromuscular Reorganization to Improve

the Control of Artificial Limbs .................... 3-46

Re-Defining Wholeness: Formulating a

Minority Group Model of Disability Identity

Development ................................................. 5-8

Rehabilitation Engineering Research

Center: Improved Technology Access for

Land Mine Survivors .................................. 3-10

Rehabilitation Engineering Research

Center on Prosthetics and Orthotics .............. 3-9

Rehabilitation Engineering Research

Center on Recreational Technologies and

Exercise Physiology Benefiting Persons

with Disabilities (RERC Rec-Tec) .............. 3-11

Rehabilitation Research and Training

Center on Aging with Developmental

Disabilities..................................................... 4-4

Rehabilitation Research and Training

Center on Stroke Rehabilitation .................... 2-7

Rehabilitation Science for Engineers and

Basic Scientists: An Advanced Training

Program....................................................... 8-16

RERC on Rehabilitation Robotics and

Telemanipulation: Machines Assisting

Recovery from Stroke (MARS) .................. 3-12

Secondary Prevention Trial of Exercise and

Diet for Improvement of Physical Fitness,

Independence, and Overall Health in Adult

Paraplegics .................................................. 2-72

The SPIRATE Project (Spinal Injury Risk

Assessment for ThromboEmbolism) ........... 2-71

Techconnect Low Interest Loan Program:

Alternative Financing Program ..................... 9-5

UIC National Research and Training Center

on Psychiatric Disability ................................ 8-1

University of Illinois at Chicago Mental

Health Services Research Program

Medication Adherence Program Study

(UIC-MAPS) .............................................. 4-19

Wearable Computing System to Promote

Total Knee Arthroplasties (TKA)

Recovery ..................................................... 3-72

Indiana

ATTAIN Inc. (Assistive Technology

Through Action in Indiana, Incorporated) ... 9-36

The Effects of Inclusive and Traditional

Educational Programs for Students with

Disabilities on Postsecondary Outcomes ....... 8-4

Scenario-Based e-Learning for Behavioral

Parent Training ............................................ 4-47

Iowa

Computer Training Materials for Deaf-Blind

Individuals................................................... 3-48

Gesture Recognition System for Personal

Computing Applications ............................. 3-89

I.T. Works ................................................... 1-14

Iowa Program for Assistive Technology

(IPAT) ......................................................... 9-37

Model Distance-Learning Computer

Training Program for Blind and Visually

Impaired Individuals.................................... 1-13

Multi-user, Interactive Online Computer

Game to Improve School-to-Work Transition

Outcomes .................................................... 1-32

Rehabilitation Research and Training

Center on Workforce Investment and

Employment Policy for Persons with

Disabilities..................................................... 1-4

Technology for Independence: A

Community-Based ResourceCenter

(TI:CBRC) .................................................. 3-26

Kansas

Assistive Technology for Kansans

Alternative Financing Program ..................... 9-6

Assistive Technology for Kansans Project .. 9-38

Improving Research Information

Dissemination and Utilization to Promote

Independent Living (The RIIL Project) ......... 6-6
C-6 Projects by State

Independent Living for People with

Psychiatric Disabilities: Using Contextual

Cues to Remove Environmental Barriers .... 4-24

Mental Retardation and Technology

Disability and Rehabilitation Research

Project ......................................................... 3-27

Rehabilitation Research and Training

Center on Full Participation in Independent

Living ............................................................ 4-5

Rehabilitation Research and Training

Center on Policies Affecting Families of

Children with Disabilities.............................. 5-3

Rehabilitation Research Training

Program....................................................... 8-18

Reusing AT/DME Acquired Through

Public Funds: Developing a Cost-Neutral,

Consumer-Driven Program ......................... 3-49

Kentucky

Kentucky Assistive Technology Service

(KATS) Network ........................................ 9-39

Loan Initiative Networking Kentuckians for

Assistive Technology (LINK-AT)................. 9-7

Louisiana

Louisiana Alternative Financing Program ..... 9-8

Louisiana Assistive Technology Access

Network (LATAN) ..................................... 9-40

Louisiana Community Housing Advocacy

Network (LA-CHAN) ................................ 4-26

Louisiana’s Self-Determination Research

Project ......................................................... 4-25

Maine

Maine Consumer Information and

Technology Training Exchange

(Maine CITE).............................................. 9-41

Maryland

ABLEDATA Database Program ................. 6-19

The Assistive Technology Guaranteed Loan

Program: Partnerships for Maximum AT

Access......................................................... 9-10

The Assistive Technology Guaranteed Loan

Program: Partnerships for Maxium AT

Access........................................................... 9-9

Bilateral Arm Training in Patients with

Chronic Hemiparesis................................... 2-77

Consumers’ Participation in Nursing Home

Decision-making Preferences and

Perceptions.................................................. 2-75

Development of CD-ROM-Based Cued

Speech Instructional Materials..................... 3-74

Increasing States’ Allocations of Medicaid

Dollars to Community-Based Care: Where

Might Policy Intervene? .............................. 2-76

Integrating TTYs into PDAs ....................... 3-73

Johns Hopkins University Burn Injury

Rehabilitation Model System

(JHU-BIRMS) ............................................ 2-20

Maryland Technology Assistance Program

(MD TAP)................................................... 9-42

National Rehabilitation Information Center

(NARIC) ..................................................... 6-18

Mid-Atlantic Disability Business Technical

Assistance Center - Region III ...................... 7-4

TalkTiles: A Multi-Sensory Language

Development Tool and Communication

Aid .............................................................. 3-90

Web-Based Telerehabilitation for Home

Assessment and Monitoring ...................... 2-101

Massachusetts

Access Solutions for Rich Media: Tools,

Pathways, and Resources............................ 3-51

Access to Convergent Media ...................... 3-50

Access to Digital Television ........................ 3-52

Access to Health Care Services for Persons

with Disabilities: Defining the Barriers and

Strategies for Change .................................. 2-14

Advanced Research Training Program in

Psychiatric Rehabilitation ............................ 8-22

Beyond the Text: Access to Images,

Audio, and Multimedia in eBooks .............. 3-53

The Development, Implementation, and

Evaluation of a Research Training Program

in Psychiatric Rehabilitation ........................ 8-19

Development of a High Bandwidth

Individualized Wireless Network ................ 3-75

Development of Methods to Monitor

Functional Tasks ......................................... 2-78

Emergent Disability, Systems Change, and

Employment of Peoplewith Disabilities ....... 5-5
Projects by State C-7

An Exploratory Study of the Factors

Determining the Vocational Recovery of

People with Psychiatric Disabilities............. 1-21

An Integrated Rehabilitation Engineering

Research Training Program ......................... 8-20

Job Retention Factors for Homeless People

with Significant Disabilities......................... 1-22

Massachusetts Assistive Technology

Partnership .................................................. 9-43

More Accurate Voice Control Systems for

the Disabled Using Improved Speech

Recognition ................................................. 3-76

New England ADA Center and Universal

Design in Educational IT (Disability and

Business Technical Assistance Center -

Region I) ....................................................... 7-2

The New England Regional Spinal Cord

Injury Center ............................................... 2-31

Predictors of Functional Outcomes and

Needs of Children andYouth with Acquired

Brain Injuries upon Discharge from

Inpatient Rehabilitation ................................. 8-5

Rehabilitation Health Services Research

Fellowship Program .................................... 8-21

Rehabilitation Readiness Tool for Latinos

with PsychiatricDisabilities ......................... 5-11

Rehabilitation Research and Training

Center in Rehabilitation of Persons with

Long-Term Mental Illness ............................. 4-6

Rehabilitation Research and Training

Center on Measuring Rehabilitation

Outcomes ...................................................... 5-4

Rehabilitation Research and Training

Center on State Systems and Employment .... 1-5

The Spaulding/Partners TBI Model System

at Harvard Medical School .......................... 2-45

Web Accessibility Initiative, Phase II ............ 6-7

Word for Word: Developing an Enhanced

Tool for Individuals with Disabilities .......... 3-54

Working It Out Together: Women with

Disabilities and Employment....................... 1-15

Michigan

Community Participation After Spinal Cord

Injury: Idioms of Beliefs and Behaviors...... 4-30

Development of a Portable Reading Device

for the Blind ................................................ 3-77

Functional Assessment and Treatment of

Neurogenic Hypotension Due to Spinal

Cord Injury .................................................. 2-80

Identifying Social Integration Needs During

Transition to Adulthood Following

Traumatic Brain Injury ................................ 4-27

Michigan Assistive Technology Loan

Fund ............................................................ 9-11

Michigan’s Assistive Technology Project ... 9-44

Quality of Life for Persons with a Spinal

Cord Injury: A Qualitative Longitudinal

Study ........................................................... 4-29

Rehabilitation Engineering Research Center

on Ergonomic Solutions for Employment ... 3-13

Repetitive Intensive Training Exercise:

Effect on Upper Extremity Motor Function

in Spasticity ................................................. 2-79

Southeastern Michigan Traumatic Brain

Injury System (SEMTBIS).......................... 2-46

Stress and Coping over the Life Course: A

Perspective on Women with Spinal Cord

Injury ........................................................... 4-28

The UMHS/MSU/AACIL Rehabilitation

Research Training Program ......................... 8-23

University of Michigan Model Spinal Cord

Injury Care System...................................... 2-32

Minnesota

Effect of Electrical Stimulation on Brain

Reorganization in Subjects with Stroke ....... 2-81

Home-Based Tracking Training to Stimulate

Neuroplasticity and Improve Function in

Stroke .......................................................... 2-83

Mayo Clinic Traumatic Brain Injury Model

System......................................................... 2-47

Minnesota System of Technology to

Achieve Results (STAR) Program .............. 9-45

National Study on the Impact of SSI

Redetermination of 18-Year-Old Youth with

Disabilities on Employment, Independent

Living, and Community Participation

Outcomes .................................................... 4-31

Personalized Health Care for Individuals

with Physical Disabilities: Satisfaction with

Services and Outcomes ............................... 2-82
C-8 Projects by State

Rehabilitation Research and Training

Center for Community Integration of

Persons with Mental Retardation ................... 4-7

Secondary Analyses of Persons with

Disabilities in the 1994-1995 Disability

Supplement to the National Health Interview

Survey and in 1999 and 2000 NHIS

Surveys ....................................................... 5-12

The Self-Advocacy Movement: A History

of the Unacknowledged Civil Rights

Movement ..................................................... 8-6

Mississippi

Collaborative Study of Impaired SelfAwareness After Traumatic Brain Injury ..... 2-15

Mississippi Project START (Success

Through Assistive/Rehabilitative

Technology) ................................................ 9-46

Persons Aging with Hearing and Vision

Loss............................................................. 1-16

RRTC on Improving Vocational

Rehabilitation Services for Individuals Who

Are Blind or Have Severe Visual

Impairments................................................... 1-6

Traumatic Brain Injury Model System of

Mississippi (TBIMSM) ............................... 2-48

Missouri

Assistive Technology in the Community..... 3-28

A Comprehensive Survey of the Status of

Distance Education in Rehabilitation

Counseling .................................................... 8-7

Great Plains ADA and Information

Technology Center - RegionVII .................... 7-8

Missouri Arthritis Rehabilitation Research

and Training Center (MARRTC) .................. 2-8

Missouri Assistive Technology Project ....... 9-47

Missouri Model Spinal Cord Injury

System......................................................... 2-33

Missouri Model Traumatic Brain Injury

System (MOMBIS) ..................................... 2-49

PeerLink: Empowering Persons with

Disabilities to ManageTheir Own

Information .................................................. 4-32

Preparing Avenues for Competitive

Employment in Information Technology

(PACE-IT) Project ...................................... 1-17

Research Enrichment Program for

Physiatrists .................................................. 8-24

Montana

MonTECH .................................................. 9-48

Rehabilitation Research and Training

Center on Rural Rehabilitation Services ........ 1-7

Rehabilitation Research and Training

Center on Rural Rehabilitation Services ........ 1-8

Self-Employment Technology Transfer

(SETT) ........................................................ 1-23

Nebraska

Nebraska Assistive Technology

Partnership .................................................. 9-49

Nevada

Nevada Assistive Technology

Collaborative ............................................... 9-50

New Hampshire

Catecholaminergic Modulation of Working

Memory in Traumatic Brain Injury: An

fMRI Study of the Effects of D2

Dopaminergic and Alpha-2 Adrenergic

Agonistics ................................................... 2-86

Developing and Evaluating an Interactive

Tool to Support Literacy Learning in

Adolescents with Severe Speech and

Physical Impairments .................................. 2-84

New Hampshire Technology Partnership

Project ......................................................... 9-51

Project PATH (Promoting Access,

Transition, and Health) ................................ 2-85

Survey of Home Ownership Nationwide .... 4-33

New Jersey

Advanced Rehabilitation Research Training

Center on Outcomes and Intervention

Effectiveness ............................................... 8-25

Improving the Health Care Encounter for

Persons Who Have Developmental

Disabilities................................................... 4-34

JFK-Johnson Rehabilitation Institute TBI

Model System ............................................. 2-50

New Jersey Assistive Technology

Advocacy Center (ATAC) .......................... 9-52
Projects by State C-9

Northern New Jersey Spinal Cord Injury

System......................................................... 2-34

Northern New Jersey Traumatic Brain

Injury System (NNJTBIS)/NIDRR TBI

Model Systems National Database .............. 2-51

Traumatic Brain Injury National Data

Center............................................................ 6-8

The Use of Virtual Reality Technology for

Assessment of Driving Skills Following

Acquired Brain Injury ................................. 3-55

New Mexico

New Mexico Technology Assistance

Program (NMTAP) ..................................... 9-53

New York

Acupuncture as an Adjunctive Treatment in

Stroke Rehabilitation ................................... 2-88

Advanced Rehabilitation Research

Training ....................................................... 8-26

Center for International Rehabilitation

Research Information and Exchange

(CIRRIE) ...................................................... 6-9

Community Reintegration and Quality of

Life Following Traumatic Brain Injury ....... 2-89

Development of an Audio/Tactile

Accommodation for Delivery of

Standardized Math Tests to Students Who

Are Blind or Visually Impaired ................... 3-92

Development of an Audio/Tactile Atlas of

the World for Use by Individuals Who Are

Blind or Visually Impaired .......................... 3-91

Development of an Authoring Tool to

Allow Teachers to Create Audio-Tactile

Materials for Blind or Visually Impaired

Students....................................................... 3-78

Diagnostica K-12: A School-Centered

Collaborative Framework for Mental Health

Monitoring .................................................. 3-79

Evaluating Independent Living Outcomes

for Blind and Visually Impaired Older

People: Development of a Nationally

Standardized Minimum Dataset (NSMD) ... 4-35

A Four-Year Research and Demonstration

Project to Address Ways to Improve the

Employment Practices Covered by Title I

of the Americans with Disabilities Act

(ADA)......................................................... 1-18

The Impact of Managed Care on

Rehabilitation Services and Outcomes for

Persons with Spinal Cord Injury ................. 2-90

Improving Outcomes for Individuals Who

Are Low-Functioning Deaf ........................... 8-8

Interventions to Improve Memory in

Patients with Multiple Sclerosis................... 2-91

Measuring Employer Openness to Hiring

People with Disabilities: Development of Expanded Labor Market Survey ...................... 1-25

Medication Management and Successful

Work Transition in Persons with

HIV/AIDS .................................................. 1-24

Mount Sinai Spinal Cord Injury Model

System......................................................... 2-35

National Assistive Technology Advocacy

Project ......................................................... 6-17

National Resource Center on Supported

Living and Choice for People with Mental

Retardation and Developmental

Disabilities................................................... 6-10

New York State Technology-Related

Assistance of Individuals with Disabilities

(TRAID) Project ......................................... 9-54

New York Traumatic Brain Injury Model

System (NYTBIMS) ................................... 2-52

Northeast Disability and Business Technical

Assistance Center- Region II ......................... 7-3

Online Instruction Tools for Teaching

Mathematical Problem Solving to Learning

Disabled Students........................................ 3-93

Randomized Controlled Trial of AntiFatiguing Exercise to Improve Function in

Multiple Sclerosis Patients........................... 2-87

Rehabilitation Engineering and Research

Center (RERC) on Universal Design and

the Built Environment at Buffalo ................ 3-15

Rehabilitation Engineering Research Center

on Technology Transfer .............................. 3-14

Rehabilitation Research and Training Center

for Economic Research on Employment

Policy for Persons with Disabilities............... 1-9
C-10 Projects by State

Rehabilitation Research and Training

Center on Independent Living Management

(RRTC-ILM)................................................. 4-8

Rehabilitation Research and Training

Center on the Community Integration of

Individuals with Traumatic Brain Injury........ 4-9

Utilization and Analysis of Census 2000

Data to Inform Disability Advocacy and

Employment Policy ..................................... 5-13

North Carolina

ABC-Link: A Web-Based Literacy

Assessment Tool for Students with

Significant Disabilities................................. 3-56

Advancing Assistive Technology

Outcomes .................................................... 3-29

Carolinas Traumatic Brain Injury

Rehabilitation and Research System

(CTBIRRS)................................................. 2-53

Exploring Universal Design: Developing

and Disseminating Universal Design

Education Material Online .......................... 6-14

North Carolina Assistive Technology

Project ......................................................... 9-55

Promoting the Practice of Universal

Design ......................................................... 3-57

Rehabilitation Engineering Research Center

on Communication Enhancement ............... 3-16

Rehabilitation Engineering Research Center

(RERC) on Universal Design and the Built

Environment at NCSU ................................ 3-17

Resolving ADA Employment

Discrimination Charges............................... 1-26

Technical Support for Data Collection

Development: Implementation of NIDRR’s

Web-Based Performance Reporting System

Data Collection ........................................... 6-20

North Dakota

North Dakota Interagency Program for

Assistive Technology (IPAT) ...................... 9-56

Northern Mariana Islands

Commonwealth of the Northern Mariana

Islands (CNMI) Assistive Technology

Project: System of Technology-Related

Assistance for Individuals with Disabilities

(STRAID) ................................................... 9-57

Ohio

Assistive Technology of Ohio

(AT OHIO) ................................................. 9-58

Empowering Persons with a Spinal Cord

Injury Through a Shared Decision-Making

Program....................................................... 2-92

A Family Intervention Following

Traumatic Brain Injury in Children ............. 4-36

Neuropsychological Functioning and

Psychosocial Adjustment in Adolescents

with Spina Bifida and NLD ........................ 4-37

Ohio Regional TBI Model System .............. 2-54

The Physiologic Basis of Functional

Electrical Stimulation on Muscle Atrophy

in Acute Spinal Cord Injury ........................ 2-93

Rehabilitation Research and Training

Center on Drugs and Disability ................... 1-10

Variables Associated with Vocational

Success Among Persons with Severe

Mental Illness: An Empirical Study ............. 1-27

Oklahoma

Oklahoma ABLE Tech ............................... 9-59

Oregon

Community Environmental Assessment

Project: A Multi-Method Approach to

Identify Barriers, Assets, and Engage

Communities for Change ............................ 4-40

Getting A Life: Research on Individual

and Person-Centered Planning Processes

in Oregon .................................................... 4-38

Healthy Lifestyles Evaluation Project ......... 4-41

Information Technology Access for Adults

with Cognitive Disabilities: Participatory

Development of a Model for Software

Accessibility, Training, and Support............ 3-58

An Innovative Dialysis Regeneration

Cartridge for Portable Hemodialysis ......... 2-102
Projects by State C-11

Men’s Personal Assistance Services Abuse

Research Project.......................................... 4-39

Oregon Technology Access for Life Needs

(TALN) ....................................................... 9-60

Oregon Traumatic Brain Injury Model

System......................................................... 2-55

Rehabilitation Research and Training

Center: Health and Wellness Consortium ...... 2-9

Rehabilitation Research and Training

Center to Improve Services for Children

with Serious Emotional and Behavioral

Disabilities and Their Families .................... 4-10

Think and Link: Email for Individuals with

Cognitive Disabilities .................................. 3-30

Traumatic Brain Injury Rehabilitation: The

Argentina Project ........................................ 2-94

Pennsylvania

Alternative Financing Program ................... 9-12

Clinical Supervision Within the StateFederal Vocational Rehabilitation Program:

A Combined Qualitative and Quantitative

Analysis ........................................................ 8-9

Collaboration of Upper Limb Pain in

Spinal Cord Injury ....................................... 2-17

Demonstration of a Model Spinal Cord

Injury System Center................................... 2-36

Developing a Versatile, Affordable,

Wheelchair-Mounted Robotic Arm Based

on the Arlyn Feeder Bot Design ................. 3-80

The Efficacy of Computer and Sense Wear

Technologies for Promoting Health in

Adults with Fibromyalgia: A Randomized

Clinical Trial................................................ 3-59

Information Technology for Independence:

Community-Based Research ....................... 3-31

Minority Outreach Program for Alternative

Financing for Assistive Technology ............ 9-13

The Moss Traumatic Brain Injury Model

System......................................................... 2-56

The Next Generation of Audio-Based

Assistive Technology: An Instantaneous

Customizable Audio Pegging System ......... 3-81

Opening the “Black Box”: The Content and

Process of Learning in Inpatient Traumatic

Brain Injury Rehabilitation .......................... 2-95

Pennsylvania’s Initiative on Assistive

Technology (PIAT) ..................................... 9-61

Rehabilitation Engineering Research

Center on Wheelchair Transportation Safety 3-19

Rehabilitation Engineering Research

Center on Wheeled Mobility ....................... 3-18

Research Training in Rehabilitation

Science with Special Emphasis on Disability

Studies......................................................... 8-27

Simplifying Automated Braille Music

Production: Integrating the GOODFEEL

Braille Music Translator with Mainstream

Software ...................................................... 3-82

Treatment of Shoulder Dysfunction in Polio

Survivors and Elderly Adults with Lower

Extremity Impairment.................................. 2-16

University of Pittsburgh Brain Injury Model

System (UPBI) ............................................ 2-57

University of Pittsburgh Model Center on

Spinal Cord Injury ....................................... 2-37

Puerto Rico

Puerto Rico Assistive Technology Project .. 9-62

Rhode Island

Rhode Island Assistive Technology Access

Partnership (ATAP) ..................................... 9-63

Shake It Up for Alcohol and Substance Use

Reduction! Health Promotion and Capacity

Building for Persons with Traumatic Spinal

Cord Injuries ............................................... 2-96

South Carolina

A Six-Year Longitudinal Study of

Community Integration, Subjective WellBeing, and Health After Spinal Cord Injury:

Relationship with Gender, Race/Ethnicity,

and Environmental Factors.......................... 5-14

South Carolina Assistive Technology

Program (SCATP) ....................................... 9-64

South Dakota

South Dakota Assistive Technology

Project (DakotaLink)................................... 9-65
C-12 Projects by State

Tennessee

Factors Affecting Directional Hearing Aid

Performance in Children ............................. 3-60

Tennessee Technology Access Project

(TTAP)........................................................ 9-66

Texas

Advanced Rehabilitation Research

Training ....................................................... 8-29

Assessment of Social Communication

Abilities Following Traumatic Brain

Injury ........................................................... 2-98

Center for Minority Training and Capacity

Building for Disabilities Research ................. 8-2

Disability Law Resource Project (Southwest

Disability Business Technical Assistance

Center - Region VI) ...................................... 7-7

Effects of Methylphenidate on Working

Memory and Cerebral Glucose Metabolism

in Persons with Severe Traumatic Brain

Injury ........................................................... 2-18

Health Promotion for Women Aging with

Disability ..................................................... 2-97

Interdisciplinary Rehabilitation Research

Training Program ........................................ 8-28

Model Spinal Cord Injury Systems

Dissemination Center .................................. 6-12

Model System for Burn Injury

Rehabilitation .............................................. 2-21

National Center for the Dissemination of

Disability Research (NCDDR) ................... 6-11

Nemeth Math to LATEX Backtranslator

System......................................................... 3-83

North Texas Burn Rehabilitation Model

System (NTBRMS) .................................... 2-22

North Texas Traumatic Brain Injury Model

System (NT-TBIMS) .................................. 2-58

Pediatric Burn Injury Rehabilitation Model

System......................................................... 2-23

Rehabilitation Research and Training

Center on Rehabilitation Interventions

Following Traumatic Brain Injury ............... 2-10

Texas Model Spinal Cord Injury System..... 2-38

Texas Technology Access Project ............... 9-67

The Transition of Pediatric Burn Survivors

into Adulthood ............................................ 4-42

U.S. Virgin Islands

U.S. Virgin Islands Technology-Related

Assistance for Individuals with Disabilities

(TRAID) ..................................................... 9-68

Utah

Alternative Financing Program ................... 9-14

Omnidirectional Wheelchair to Greatly

Increase Mobility in Vocational

Rehabilitation and Independent Living

Daily Activities ........................................... 3-94

Practical Force Feedback System for

Upper Limb Prosthesis Users ...................... 3-84

Utah Alternative Financing Program for

Assistive Technology .................................. 9-15

Utah Assistive Technology Program

(UATP) ....................................................... 9-69

Vermont

Vermont Assistive Technology Project........ 9-70

Virginia

Alternative Financing Program ................... 9-17

Alternative Financing Technical

Assistance Project ....................................... 9-16

Assistive Technology and Cognitive

Disabilities................................................... 3-32

Automated Telephone Survey with

Speech Recognition .................................. 2-103

Baby Rubrics .............................................. 4-48

The Braille Power Reader Program ............ 3-61

Development of a Prototype IllustrationBased Computer Textbook for LD/LEP

Students....................................................... 4-49

Development of the Remote Access

Screen Reader Architecture Math System

(RA SRAMS) ............................................. 3-86

Internet-Based Beginning Sign Language

Course for Hearing Adult Learners ............. 3-85

A Low-Cost, High-Performance Physical

Activity Monitor (PAM).............................. 3-95

Middle School Phonemic Awareness

Study ........................................................... 4-43

National ADA Program Assistance

Coordinator ................................................. 7-12

Rehabilitation Research and Training Center on

Workplace Supports .................................... 1-11
Projects by State C-13

Research Training and Career

Development Program ................................ 8-30

Self-Employment Development for

Individuals with Traumatic Brain Injury ...... 1-28

Strategies People with Psychiatric

Disabilities Use to Maintain Employment

and Build Careers........................................ 1-29

Technical Assistance Project ......................... 9-2

Technical Support for Assessment of

Management and Ancillary Activities of the

National Institute on Disability and

Rehabilitation Research ............................... 8-33

Technical Support for Computer and Other

Related Activities ........................................ 8-32

Telework as an Accommodation for

Employees with Disabilities: Developing

Prediction Models for Successful and

Satisfying Careers ....................................... 1-30

Traumatic Brain Injury Model System ........ 2-59

Use of Low Vision Assistive Devices:

Exploring the Decision-Making Process of

Older Adults with Visual Impairments ........ 8-10

VCU Model Spinal Cord Injury Center ...... 2-39

Virginia Alternative Financing Program ...... 9-18

Virginia Assistive Technology System

(VATS) ........................................................ 9-71

Washington

Multi-Family Group Intervention for

Traumatic Brain Injury and Spinal Cord

Injury Patients and Families ........................ 4-44

Multiple Sclerosis Rehabilitation Research

and Training Center ..................................... 2-11

National Center on Accessible Information

Technology in Education ............................ 6-15

Northwest ADA/IT Center (Disability

Business Technical Assistance Center -

Region X) ................................................... 7-11

Northwest Regional Spinal Cord Injury

System......................................................... 2-40

University of Washington Burn Injury

Rehabilitation Model System ...................... 2-24

University of Washington Traumatic Brain

Injury Model System ................................... 2-60

Washington Assistive Technology Alliance

(WATA)....................................................... 9-72

West Virginia

A Real-Time Spatial Environment

Navigation and Description System for the

Visually Impaired ........................................ 3-87

West Virginia Assistive Technology

System (WVATS) ........................................ 9-73

Wisconsin

Advanced Rehabilitation Research Training

for Physicians and Biomedical Engineers ... 8-31

ATOMS Project: Assistive Technology

Outcomes Measurement System ................. 3-33

Developing a Social Validation Model for

Effective Utilization of Disability and

Rehabilitation Research ............................... 8-12

Enhanced Upper Limb Motor Control by

Reduced Synergistic Muscle Patterns and

Spasticity After Chemodenervation ........... 2-100

Fair and Appropriate Community

Employment (FACE): A Management

Information System (MIS) for Evaluating

the Impact of Employment Programs on

Persons with Disabilities ............................. 1-34

Quantitative Study of Anterior and Posterior

Walker Usage Dynamics in Children with

Cerebral Palsy ............................................. 2-99

Rehabilitation Engineering Research Center

on Accessible Medical Instrumentation ....... 3-22

Rehabilitation Engineering Research Center

on Information Technology Access ............. 3-20

Rehabilitation Engineering Research Center

on Telecommunication Access .................... 3-21

Rehabilitation Research and Training Center

on Community Rehabilitation Programs to

Improve Employment Outcomes................. 1-12

WisLoan: A Loan Guaranty Program to

Provide Low Interest Loans to Wisconsin

Residents with Disabilities for Purchasing

Assistive Technology .................................. 9-19

WisTech ...................................................... 9-74

Wyoming

Wyoming’s New Options in Technology

(WYNOT) .................................................. 9-75
Principal Investigators

Principal Investigators D-1

Abbey, Susan

Wisconsin Assistive Technology Program

608/266-1794 ............................................................. 9-74

Abery, Brian, PhD

University of Minnesota

612/625-5592 ............................................................. 2-82

Albin, Richard, PhD

University of Oregon

541/346-2464 ............................................................. 4-38

Ammerman, Robert T., PhD

Children’s Hospital Medical Center

513/636-8209 ............................................................. 4-37

Andrew, Jason D., PhD

573/302-7972 (V/Fax); 573/291-0162 ......................... 8-7

Apple, David F., Jr., MD

Shepherd Center, Inc.

404/350-7353 ............................................................. 2-30

Armstrong, Thomas J., PhD

University of Michigan

734/763-3742 ............................................................. 3-13

Arnold, Nancy, PhD

University of Montana

406/243-2469 ............................................................. 1-23

Avery-Meints, Sheryl

Michigan Disability Rights Coalition

517/373-3390 ............................................................. 9-44

Avestruz, Al-Thaddeus

Talking Lights, LLC

617/242-0050 ............................................................. 3-75

Bailey, M. Nell

Rehabilitation Engineering and

Assistive Technology Society of North

America (RESNA)

703/524-6686, ext. 305 (V); 703/524-6639 (TTY) ...... 9-2

Bakke, Matthew H., PhD

Gallaudet University

718/350-3203 (V/TTY) ................................................ 3-4

Barner, Kenneth, PhD

University of Delaware

302/831-6937 ............................................................. 3-39

Beck, Jim

Alaska Department of Labor and Workforce

Development

800/478-4378 (V/TTY, in state only); 907/269-

3569 (V/TTY) ............................................................. 9-21

Becker, Bruce, MD

Inland Northwest Health Service

509/473-6043 ............................................................. 4-44

Bedell, Gary M., PhD

617/358-1357 ............................................................... 8-5

Bednarczyk, Angela, PhD

IDRT, Inc.

301/942-4326 ............................................................. 3-74

Belknap, Katherine

ORC Macro

301/608-8998, ext. 100 ............................................... 6-19

Bell, Kathleen R., MD

University of Washington

206/685-0935 ............................................................. 2-60

Beltz-Mayhew, Shannon

Intelligent Automation, Inc.

301/294-5230 ............................................................. 3-90

Berners-Lee, Tim

Massachusetts Institute of Technology

617/253-5702 ............................................................... 6-7

Bertocci, Gina E., PhD

University of Pittsburgh

412/383-6595 ............................................................. 3-19

Beukelman, David

InvoTek, Inc.

402/472-5463 ............................................................. 3-63

Bidabe, Linda

Soft Touch/kidTECH, Inc.

661/396-8676 ............................................................. 3-64

Bishop, Jeffrey B., PhD

Future of Technology and Health

319/354-7652 ............................................................. 3-89

Blair, Martin E.

Utah State University

435/797-3886 .................................................... 9-14. 9-69
D-2 Principal Investigators

Blanck, Peter

University of Iowa College of Law

202/521-2930 ............................................. 1-4, 1-14, 3-26

Block, Pamela, PhD

Brown University

401/444-1879 ............................................................. 2-96

Bodine, Cathy

University of Colorado Health Sciences

Center

303/315-1281 ............................................................. 9-26

Boninger, Michael L., MD

University of Pittsburgh

412/365-4850 .................................................... 2-17, 2-37

Bowe, Frank G., PhD

Frank G. Bowe, PhD

516/463-5782 ............................................................... 8-8

Brabyn, John A.

Smith-Kettlewell Eye Research

Institute

415/345-2110................................................................ 3-3

Braunschweig, Carol, PhD

University of Illinois/Chicago

312/996-8055 ............................................................. 2-72

Braveman, Brent, PhD

University of Illinois at Chicago

312/355-2656 ............................................................. 4-22

Brienza, David M., PhD

University of Pittsburgh

412/383-6571 (V); 412/383-6598 (TTY) ................... 3-18

Brisben, Amy, PhD

AnthroTronix, Inc.

301/405-0156 ........................................................... 2-101

Brogdon, Mary

State of Minnesota Department of

Administration

651/297-7516 ............................................................. 9-45

Brooks, Laurie

Oregon Disabilities Commission

800/677-7512 (V/TTY, in state only);

503/361-1201 (V/TTY) .............................................. 9-60

Brown, Catana, PhD, OTR

University of Kansas Medical Center

913/588-7195 ............................................................. 4-24

Brubaker, Clifford, PhD

University of Pittsburgh

412/383-6571 (V); 412/383-6598 (TTY) ................... 3-18

8-27

Bruyère, Susanne, PhD

Cornell University

607/255-7727 (V); 607/255-2891 (TTY) ..... 1-9, 1-18, 7-3

Bryant, Elizabeth A.

Georgia Institute of Technology

404/894-0254 ............................................................. 6-16

Bryen, Diane Nelson, PhD

Temple University

214/204-1356 ........................................... 9-12, 9-13, 9-61

Budde, James, EdD

University of Kansas

785/864-4095 ............................................................... 6-6

Bunnell, H. Timothy, PhD

University of Delaware

302/651-6835 ............................................................. 3-40

Burch, Daniel D. PhD

Ready! Set! Sign! ! LLC

703/820-5730 ............................................................. 3-85

Burkhauser, Richard, PhD

Cornell University

607/255-7727 (V); 607/255-2891 (TTY) ..................... 1-9

Bushnik, Tamara, PhD

Santa Clara Valley Medical Center

(SCVMC)

408/295-9896 .................................................... 2-27, 2-42

Camacho, Thomas J.

CNMI Governor’s Council on

Developmental Disabilities

670/664-7000 (V) ....................................................... 9-57

Cardenas, Diana D., MD

University of Washington

206/543-8171 ............................................................. 2-40
Principal Investigators D-3

Carey, James R., PhD, PT

University of Minnesota

612/626-2746 .................................................... 2-81, 2-83

Carney, Nancy, PhD

Oregon Health and Science University

503/494-0663 ............................................................. 2-55

Carroll, Raymond A.

Rhode Island Department of Human Services

800/752-8088 (in state only); 401/421-7005,

ext. 390 (V); 401/421-7016 (TTY)............................. 9-63

Carroll, Richard, PhD

Arizona University Center on Disabilities

928/523-7033 ............................................................... 5-1

Certo, Nicholas, PhD

San Francisco State University

415/338-2503 ............................................................. 4-15

Chambers, Richard, MD

Rancho Los Amigos

562/401-7177 ............................................................. 2-65

Chan, Fong, PhD, CRC

Foundation for Rehabilitation

Education and Research

618/536-7704 ............................................................. 4-23

Chang, Leonard

TranXecute, Inc.

610/527-9288 ............................................................. 3-81

Charuhas, Chris

Visibooks, LLC

804/278-9188 ............................................................. 4-49

Cheatham, Michael L.

Futures in Rehabilitation Management

217/753-1190.............................................................. 1-31

Cherney, Leora, PhD

Rehabilitation Institute Research

Corporation

312/238-1117 .............................................................. 3-47

Chesnut, Randall, MD

Oregon Health and Science University

503/494-3217 ............................................................. 2-94

Childress, Dudley S., PhD

Northwestern University

312/238-6500 ...................................................... 3-9, 3-10

Cicerone, Keith D., PhD

JFK Johnson Rehabilitation Institute

732/906-2640 ............................................................. 2-50

Clark, Florence, PhD, OTR

University of Southern California

323/442-2875 ............................................................. 2-66

Coker, Charles C., PhD

Research Solutions International

715/235-7531 ............................................................. 1-34

Collins, James J., PhD

Boston University

617/353-0390 ............................................................. 8-20

Collins, Michael

University of Iowa College of Law

202/521-2930 ............................................................... 1-4

Cook, Debbie

University of Washington

360/438-8008 (V); 360/438-8644 (TTY) ................... 9-72

Cook, Judith A., PhD

University of Illinois/Chicago

312/422-8180, ext. 19 ................................................... 8-1

Copolillo, Al, PhD,OTR/L

804/828-2219 ............................................................. 8-10

Corrigan, John D., PhD

Ohio Valley Center for Brain

Injury Prevention and Rehabilitation

614/293-3830 ............................................................. 2-54

Dalto, Michael

State of Maryland

410/554-9230 ...................................................... 9-9, 9-10

Davies, Daniel K.

AbleLink Technologies, Inc.

719/592-0347 .................................................... 3-66, 4-52

de Jong, Jim

University of Missouri/Columbia

573/882-3600 (V) ......................................................... 7-8
D-4 Principal Investigators

DeJong, Gerben, PhD

MedStar Research Institute

202/466-1905 ............................................................... 2-4

DeLisa, Joel A., MD

Kessler Medical Rehabilitation

Research and Education

Corporation (KMRREC)

973/243-6805 ............................................................. 2-34

DeLisle, Norm

Michigan Disability Rights Coalition

517/333-2477, ext. 35 ................................................. 9-11

DeRuyter, Frank, PhD

Duke University

919/684-6271 .................................................... 3-16, 3-29

DeVivo, Michael J., DrPH

University of Alabama/Birmingham

205/934-3320 ............................................................... 6-1

Diaz-Arrastia, Ramon R., MD, PhD

The University of

Texas Southwestern Medical Center

214/648-6409 ............................................................. 2-58

Dijkers, Marcel, PhD

Mount Sinai School of Medicine

212/659-8587 .................................................... 2-89, 2-90

Ditunno, John F., MD

Thomas Jefferson University

215/955-5580 ............................................................. 2-36

Doe, Tanis, PhD

California Foundation for Independent

Living Centers (CFILC)

916/325-1690 (V); 916/325-1695 (TTY) ................... 3-24

Donovan, William H., MD

The Institute for

Rehabilitation and Research (TIRR)

713/797-5912 ............................................................. 2-38

Dote-Kwan, Jamie

California State University

323/343-4320 ............................................................. 4-14

Drainoni, Mari-Lynn, PhD

Health and Disability Working

Group Boston University

617/426-4447 ............................................................. 2-14

Drum, Charles, JD, PhD

Oregon Health and Science University

503/494-8047 ........................................... 4-40, 4-41, 7-11

Duggan, Colette, PhD

Wayne State University

313/745-1070; 313/745-9735..................................... 4-29

Dunlap, Glen, PhD

University of South Florida

813/974-4612 ............................................................... 4-2

Ellison, Marsha, PhD

Boston University

617/353-3549 ............................................................. 8-22

Elrod, Susanne

University of Texas at Austin

800/828-7839 (V/TTY, in state only);

512/471-7621 (V); 512/471-1844 (TTY) ................... 9-67

Emery, Amber

Vcom3D, Inc.

407/737-7310, ext. 117 ............................................... 3-70

Engrav, Loren H., MD

University of Washington

206/731-3209 ............................................................. 2-24

Epps, Irvine E., EdD

Texas Southern University

713/313-7224 ............................................................... 8-2

Erickson, Karen, PhD

University of New Hampshire

507/933-7444 .................................................... 2-84, 3-56

Everson, Jane M., PhD

Louisiana State University

Health Sciences Center

504/942-8188 ............................................................. 4-25

Farkas, Marianne, PhD

Boston University

617/353-3549 ...................................................... 4-6, 5-11
Principal Investigators D-5

Farra-San Nicolas, Heidi E., PhD

AVP/CEDDARS/GSAT

671/735-2482 (V) ....................................................... 9-32

Farver, Kent A.

Iowa Department for the Blind

515/281-1256 .................................................... 1-13, 3-48

Fauerbach, James A., PhD

Baltimore Regional Burn Center

410/550-0894 ............................................................. 2-20

Faulhaber, Charles B., PhD

University of California/Berkeley

510/642-3781 ............................................................... 5-6

Ferrante, Richard

University of South Carolina School of

Medicine

803/935-5231 (V) ....................................................... 9-64

Ficarro, John M.

Connecticut Department of Social Services

800/537-2549 (in state only);

860/424-4881 (V); 860/424-4839 (TTY) ................... 9-27

Field, Gerry

WGBH Educational Foundation

617/300-3400 ............................................................. 3-52

Fischlowitz-Leong, Barbara

808/532-7110.............................................................. 9-33

Fisher, Nadine M., EdD

State University of New York

(SUNY) at Buffalo

716/829-3141, ext. 145 ............................................... 2-87

Fletcher, Valerie

Adaptive Environments Center, Inc.

617/695-1225, ext. 26 ................................................... 7-2

Flippo, Karen

Brain Injury Association of America Inc.

703/236-6000, ext. 108 ...................................... 1-28, 3-32

Foley, Susan, PhD

University of Massachusettes, Boston

617/287-4317 ...................................................... 1-15, 5-5

Follansbee, Robert, EdD

Education Development Center Inc.

617/969-7100 ............................................................. 3-54

Forrester, J. Chase, JD

KATS Network Coordinating Center

800/327-5287 (V/TTY, in state only);

502/327-0022 (V/TTY);

502/327-9855 (TTY) .................................................. 9-39

Frieden, Lex

The Institute for Rehabilitation and

Research (TIRR)

713/797-5283 ............................................................... 7-7

Friedman, Robert, PhD

University of South Florida

813-974-4640 ............................................................... 4-3

Friesen, Barbara, PhD

Portland State University

503/725-8118.............................................................. 4-10

Fujiura, Glenn T., PhD

University of Illinois/Chicago

312/413-1977 ............................................................... 5-9

Fulford, Cris

ATTAIN Inc.

317/486-8808 (V); ...................................................... 9-36

Galea’i, Pete P.

Division of Vocational Rehabilitation

011/684/699-1529 (V); 011/684/233-

7874 (TTY) ................................................................. 9-22

Garrett, Michael C.

Garrett Technologies, Inc.

847/561-3410 ............................................................. 3-72

Gartner, Joseph, MD

Medicine Rules Corporation

631/334-5395 ............................................................. 3-79

Gaskin, Sue

Arkansas Rehabilitation Services

501/683-6052 ............................................................... 9-4

Gattis Jr., Robert H.

Meeting the Challenge, Inc.

719/578-8448 ...................................................... 6-13, 7-9
D-6 Principal Investigators

Gay, Jane, RN

Iowa University Center for Excellence in

Disabilities

319/356-4463 ............................................................. 9-37

Gilbride, Dennis, PhD

Syracuse University

315/443-5264 ............................................................. 1-25

Gill, Carol J., PhD

University of Illinois at Chicago

312/355-0550 (V); 312/996-4664 (TTY) ............ 4-21, 5-8

Given, Barbara, PhD

George Mason University

703/993-4406 ............................................................. 4-43

Glenn, Mel B., MD

Spaulding Rehabilitation Hospital

617/573-2625 ............................................................. 2-45

Glueckauf, Robert L., PhD

University of Florida

College of Heath Professions

352/265-0680, ext. 4-6880 ......................................... 4-17

Goldberg, Larry R.

WGBH Educational Foundation

617/300-3486 ............................................................. 3-50

Golden, Diane, PhD

Missouri Department of Labor and

Industrial Relations

800/647-8557 (V, in state only);

800/647-8558 (TTY, in state only);

816/373-5193 (V); 816/373-9315 (TTY) ................... 9-47

Goldman, Amy S.

Temple University

215/204-3862 (Goldman) .................................. 9-13, 9-61

Gopal, Deepa

Logical Software Solutions

469/467-6569 ............................................................. 3-83

Gordon, Wayne A., PhD

Mount Sinai School of Medicine

212/659-9372 ...................................................... 2-52, 4-9

Gray, David, B., PhD

Washington University

314/286-1658 ............................................................. 3-28

Green, David, MD, PhD

Rehabilitation Institute Research Corporation

312/238-4701 ............................................................. 2-71

Grossi, Teresa, PhD

Teresa Grossi, PhD

812/855-6508 ............................................................... 8-4

Gullett, Barbara

Arkansas Rehabilitation Services

800/828-2799 (V/TTY, in state only);

501/666-8868 (V/TTY) .............................................. 9-24

Gunther, Wilhelmina

Illinois Assistive Technology Project

800/852-5110 (V/TTY, in state only);

217/522-7985 (V); 217/522-9966 (TTY) ............ 9-5, 9-35

Hagglund, Kristofer, PhD

University of Missouri/Columbia

573/884-1688 ............................................................. 2-33

Hagner, David, PhD

University of New Hampshire

603/862-4320 ............................................................. 4-33

Hammel, Joy

University of Illinois/Chicago

312/996-3513 ............................................................. 4-20

Hammond, Flora M., MD

Charlotte Mecklenburg Hospital Authority

704/355-4330 ............................................................. 2-53

Hammond, Marilyn, PhD

Utah State University

800/524-5152; 435/797-3811 ..................................... 9-15

Hamner, Doris, PhD

University of Massachusetts

617/287-4364 ............................................................... 5-5

Hanks, Robin A., PhD

Wayne State University and

Rehabilitation Institute of Michigan

313/745-9763 ............................................................. 2-46

Harkins, Judy, PhD

Gallaudet University

202/561-5257 ............................................................. 3-21
Principal Investigators D-7

Harrington, Rita

California Department of Rehabilitation

916/263-8676 (V) ....................................................... 9-25

Harris, Gerald F., PhD

Marquette University

414/288-0698 .................................................... 2-99, 8-31

Hart, Karen A., PhD

The Institute for Rehabilitation

and Research (TIRR)

713/797-5946 ............................................................. 6-12

Hart, Tessa, PhD

Albert Einstein Healthcare Network

215/456-6544 .................................................... 2-56, 2-95

Hayden, Mary F., PhD

612/625-6046 ............................................................... 8-6

Heinemann, Allen W., PhD

Northwestern University

312/238-2802 ............................................................. 8-15

Heller, Tamar, PhD

University of Illinois/Chicago

800/996-8845 (V); 312/413-1510 (V);

312/413-0453 (TTY) ........................................... 4-4, 8-17

Helm, Phala, MD

University of Texas/Dallas

214/648-2288 ............................................................. 2-21

Henderson, Judy

Lucile Packard Children’s Hospitals at

Stanford

650/237-9222 ............................................................. 3-37

Herbert, James T., PhD

814/863-3421 ............................................................... 8-9

Herndon, David, MD

University of Texas Medical Branch

409/770-6731 ............................................................. 2-23

Heydt, Richard, PhD

SRI International

650/859-4452 ............................................................. 3-35

Hiatt, Ricki

North Carolina Department of Health and

Human Services

919/850-2787 (V/TTY) .............................................. 9-55

Hibbard, Mary R., PhD

Mount Sinai School of Medicine

212/659-9374 ............................................................. 8-26

High Jr., Walter M., PhD

The Institute for

Rehabilitation and Research (TIRR)

713/666-9550 ............................................................. 2-10

Hinton, Daniel E.

Science Applications International

Corporation

703/248-7717 ............................................................. 3-61

Holland, Janice A.

West Virginia University Center for

Excellence in Disabilities

304/766-4694 (V) ....................................................... 9-73

Holliday, Greg, PhD

University of Missouri/Columbia

573/882-8329 ............................................................. 1-17

Holm, Margo, PhD

University of Pittsburgh

412/383-6621 ............................................................. 3-59

Hourtenville, Andrew J., PhD

Cornell University

607/255-5702 (V); 607/255-2891 (TTY) ................... 5-13

Howe, Marylyn

Children’s Hospital

800/848-8867 (V/TTY, in state only);

617/355-7153 (V); 617/355-7301 (TTY) ................... 9-43

Huang, Larke, PhD

Georgetown University

202/687-8617 (V); 202/687-5503 (TTY) ..................... 2-5

Hughes, Rosemary B., PhD

Baylor College of Medicine

713/960-0505 ............................................................. 2-97

Hull, Maury, PhD

University of California - Davis

530/752-6220 ............................................................. 2-63
D-8 Principal Investigators

Hursh, Norman, ScD

Sargent College

617/353-2709 ............................................................. 1-22

Hurvitz, Edward, MD

University of Michigan

734/936-7200 ............................................................. 2-79

Ingham, Kenneth R., PhD

Amazability, Inc.

617/795-0134 ............................................................. 3-76

Jackson, Amie B., MD

University of Alabama/Birmingham

205/934-3334 (V); 205/934-3330 (V);

205/934-4642 (TTY)

205/934-3283 ...................................................... 2-1, 2-25

Jakobs, Thomas

InvoTek, Inc.

479/632-4166 (Jakobs) ............................................... 3-63

Jans, Lita, PhD

InfoUse

510/549-6509 ...................................................... 4-50, 9-1

Jensema, Carl J., PhD

IDRT, Inc.

301/942-4326 ............................................................. 3-73

Jette, Alan M., PhD

Boston University

617/353-2704 ...................................................... 5-4, 8-21

Johns, Alicia C.

University Legal Services

202/547-0198, ext. 134 ............................................... 9-29

Johnson, David R., PhD

University of Minnesota

612/624-1062 ............................................................. 4-31

Johnson, Kurt, PhD

University of Washington

206/543-3677 ............................................................. 6-15

Johnston, Mark V., PhD

Kessler Medical Rehabilitation

Research and Education Corporation

(KMRREC)

973/243-2015 .................................................... 2-51, 8-25

Johnstone, Brick, PhD

University of Missouri/Columbia

573/882-6258 ............................................................. 2-49

Jones, Cynthia

Center for an Accessible Society

Exploding Myths, Inc.

619/232-2727, ext. 111 (V); 619/234-3130 (TTY) ...... 6-4

Jones, Erica C., MPH

Public Health Institute

510/848-2980 (V); 510/848-1840 (TTY)

800/949-4232 (V/TTY, in AZ, CA, HI,

NV, and the Pacific Basin); 510/848-2980(V);

510/848-1840 (TTY) .................................................. 7-10

Jones, Michael, PhD

Georgia Centers for Advanced

Telecommunications Technology (GCATT)

404/352-2020 (Jones) ................................................... 3-7

Jones, Robin A.

University of Illinois/Chicago

312/996-1059 ............................................................... 7-6

Kajiyama, Bruno

Photozig, Inc.

408/568-0143 ............................................................. 3-65

Kaplan, Deborah, JD

World Institute on Disability

510/251-4338 (V); 510/208-9493 (TTY);

510/763-4100 (V, main

switchboard) ................................................................. 4-1

Kaplan, Shelley

Georgia Tech Research Corporation

404/385-0636 ............................................................... 7-5

Karshmer, Arthur I., PhD

University of South Florida

863/667-7067 ............................................................. 3-43

Keating, Thomas, PhD

Eugene Research Institute

541/342-3763 ............................................................. 3-58

Keilhofner, Gary, PhD

University of Illinois at Chicago

312/996-4973 ............................................................. 4-22
Principal Investigators D-9

Kemp, Bryan J., PhD

Los Amigos Research and Education

Institute, Inc. (LAREI)

562/401-7402 ............................................................... 2-3

Kennedy Smith, William, MD

Center for International Rehabilitation

312/926-0030 ............................................................. 3-10

Kickul, Grady

DakotaLink

605/773-3195 (V) ....................................................... 9-65

Kiernan, William E. PhD

Institute for Community Inclusion

617/287-4357 ............................................................... 1-5

King, Rosemarie B., PhD, RN

Rehabilitation Institute Research Corporation

312/908-8038 ............................................................. 2-74

Kirchner, Corinne, PhD

American Foundation for the Blind

212/502-7640 ............................................................. 4-35

Kirkpatrick, Andrew

WGBH Educational Foundation

617/300-4420 ............................................................. 3-51

Kirshbaum, Megan, PhD

Through the Looking Glass

510/848-1112 ....................................................... 4-13, 6-2

Klaus, Alan

New Mexico State Department of Education

505/954-8521 ............................................................. 9-53

Klein, Mary G., PhD

MossRehab

215/456-7864 ............................................................. 2-16

Kniskern, Joy

Georgia Department of Human Resources

800/497-8665 (V, in state only);

404/657-3084 (V); 404/657-3095 (TTY) ................... 9-31

Knorr, Kenneth

Virginia Department of Rehabilitative

Services (DRS)

804/662-9995 ........................................... 9-17, 9-18, 9-71

Koppenhaver, David, PhD

University of New Hampshire

507/933-7444 ............................................................. 2-84

Kowalske, Karen

The University of Texas Southwestern

Medical Center

214/648-2288 ............................................................. 2-22

Kraft, George H., MD

University of Washington

206/543-7272 ............................................................. 2-11

Krahn, Gloria, PhD

Oregon Health and Science

University

503/494-8364 ............................................................... 2-9

Krause, J. Stuart, PhD

Shepherd Center, Inc.

404/350-7551 ............................................................. 2-69

Krause, James, PhD

Medical University of South Carolina

843/792-1337 ............................................................. 5-14

Kreutzer, Jeffrey S., PhD

Virginia Commonwealth University

804/828-9055 .................................................... 2-59, 8-30

Krupp, Lauren B., MD

State University at Stony Brook

631/444-8119.............................................................. 2-91

Kuiken, Todd A., MD, PhD

Rehabilitation Institute Research

Corporation

312/238-8072 ............................................................. 3-46

Lakin, Charlie, PhD

University of Minnesota

612/624-5005 ...................................................... 4-7, 5-12

Lammertse, Daniel P., MD

Craig Hospital

303/789-8220 .................................................... 2-12, 2-28

Landau, Steven

Touch Graphics

718/383-8265 ........................................... 3-78, 3-91, 3-92
D-10 Principal Investigators

Landsberger, Samuel, ScD

Los Amigos Research and Education

Institute, Inc. (LAREI)

562/401-7994; ....................................................... 3-1, 3-2

Lane, Joseph

State University of New York (SUNY) at

Buffalo

716/829-3141 (V); 800/628-2281 (TTY) ................... 3-14

Langton, Anthony J., MS

United Cerebral Palsy Associations, Inc.

877/835-7335; 404/385-0633....................................... 6-5

LaPlante, Mitchell P., PhD

University of California/San Francisco

415/502-5210 (V); 415/502-5216 (TTY) ..................... 5-2

Larson, Sheryl, PhD

University of Minnesota

612/624-6024 ............................................................. 5-12

Lee, Judith A.

North Dakota Department of Human Services

800/265-4728 (V/TTY); 701/265-4807 (V/TTY) ...... 9-56

LeJeune,B.J.

Mississippi State University

662/325-2001 ............................................................. 1-16

Lence, Ellen

New Jersey Protection and Advocacy, Inc.

800/342-5832 (V, in state only); 609/633-7106

(TTY); 609/292-9742 (NJ P&A Intake Unit) ............. 9-52

Letzt, Alan M.

Adherence Technologies Corporation

703/978-7197 ........................................................... 2-103

Levin, Harvey S., PhD

Baylor College of Medicine

713/798-4860 ............................................................. 2-18

Lewis, Christine

University of the Virgin Islands/UAP

340/693-1323 ............................................................. 9-68

Lezotte, Dennis C., PhD

University of Colorado Health

Sciences Center

303/315-6873 ............................................................. 2-19

Lind, Patti

P.R. Lind and Company

641/856-5573 ............................................................. 1-32

Linder, Toni W., EdD

Play-Based Technologies, LLC

303/871-2474 ............................................................. 4-46

Loux, Donny

Nevada Rehabilitation Division

888/337-3839 (V, in state only); 775/687-

4452 (V); 775/687-3388 (TTY) ................................. 9-50

Lysack, Catherine, PhD

Wayne State University

313/577-2297 ............................................................. 4-30

MacKenzie, Elizabeth P., PhD

WisdomTools, Inc.

812/856-4201 ............................................................. 4-47

Magrab, Phyllis, PhD

Georgetown University

202/687-8617 (V); 202/687-5503 (TTY) ..................... 2-5

Malec, James F., PhD

Mayo Medical Center

507/255-3116.............................................................. 2-47

Mann, William C., PhD

University of Florida

352/392-2617 (V/TTY) ....................................... 3-6, 8-14

Manning, Sarah

Learnimation............................................................... 3-93

Martinez, Kathy

World Institute on Disability

510/251-4326 ............................................................... 6-3

Matheis, Dave

Kentucky Department of Vocational

Rehabilitation

502/564-4440 ............................................................... 9-7

May, Michael

Sendero Group, LLC

530/757-6800 ............................................................. 3-23

McAllister, Thomas W., MD

Dartmouth College

603/650-5824 ............................................................. 2-86
Principal Investigators D-11

McCann, William R.

Dancing Dots Braille Music Technology, LP

610/783-6692 ............................................................. 3-82

McCoy, Taffy (M.L.), PhD

The Thresholds

773/880-6260, ext. 230 ............................................... 1-20

McCrory, Mac

Oklahoma State University

800/257-1705 (V/TTY); 405/744-9864 (V) ............... 9-59

McDonald, Craig, MD

University of California/Davis

530/752-2903 (V) ......................................................... 2-2

McGregor, Gail

University of Montana

800/732-0323 (V/TTY); 406/243-5676 (V/TTY) ...... 9-48

McGuire, John, MD

Medical College of Wisconsin

414/805-7366 ........................................................... 2-100

McKinley, William O., MD

Virginia Commonwealth University

804/828-0861 ............................................................. 2-39

McNeal, Donald, PhD

Los Amigos Research and Education Institute, Inc.

(LAREI)

562/401-7994 (V) ......................................................... 3-1

Meidenbauer, Nancy

Rehabilitation Engineering and

Assistive Technology Society of

North America (RESNA)

703/524-6686. ext. 304 (V); 703/524-6639 (TTY) .... 9-16

Menz, Fredrick E., PhD

University of Wisconsin/Stout

715/232-1389 (V); 715/232-5025 (TTY) ................... 1-12

Meyer III, Walter J., MD

University of Texas Medical Branch

409/747-8355 ............................................................. 4-42

Meythaler, Jay M., JD, MD

University of Alabama/Birmingham

205/934-2088 ............................................................. 2-61

Milchus, Karen

Georgia Institute of Technology

Center for Assistive Technology &

Environmental Access

404/894-0393 ............................................................... 3-8

Miller, Freeman, MD

Alfred I. duPont Hospital for Children

302/651-5921 ............................................................. 2-68

Miller, Keith

University of Wyoming

307/766-2762 (V) ....................................................... 9-75

Miller, Nancy, PhD

University of Maryland/Baltimore County

410/455-3889 .................................................... 2-75, 2-76

Mineo Mollica, Beth A., PhD

Center for Applied Science and Engineering

302/651-6836 .................................................... 3-41, 9-28

Miranda, Maria I.

FILIUS Institute

800/496-6035 (V/TTY, from the U.S.);

800/981-6033 (V/TTY, from Puerto Rico);

787/767-6035 (V); 787/764-6062 (V);

787/767-8642 (TTY) .................................................. 9-62

Mitchell, Brian, PhD

Omegaware, Inc.

734/973-1177.............................................................. 3-77

Mitchell, Helena, PhD

Georgia Centers for Advanced

Telecommunications Technology

(GCATT)

404/894-0058 ............................................................... 3-7

Moore, Dennis C., EdD

Wright State University

937/775-1484 (V/TTY) .............................................. 1-10

Moore, J. Elton, EdD

Mississippi State University

662/325-2001 ............................................................... 1-6

Morford, Ronald A.

Automated Functions, Inc.

703/883-9797 ............................................................. 3-86
D-12 Principal Investigators

Morris, Michael

University of Iowa College of Law

202/521-2930 ............................................................... 1-4

Moss, Kathryn E., PhD

University of North Carolina

919/966-6061 ............................................................. 1-26

Mulroy, Sara J., PhD

Los Amigos Research and Education

Institute, Inc. (LAREI)

562/401-7177 ............................................................. 3-34

Murray, Patrick, MD

Case Western Reserve University

216/778-3901 ............................................................. 2-92

Mwachofi, Ari K., PhD

University of Arkansas/Pine Bluff

870/575-7143 ............................................................. 2-62

Mysiw, W. Jerry, MD

Ohio State University

614/293-3801 ............................................................. 2-93

Nash, Mark S., PhD

University of Miami

305/243-3628 ............................................................. 2-13

NCAM

WGBH Educational Foundation

617/300-3400 ............................................................. 3-53

Nesbit, Julie M.

Louisiana Department of Health and

Hospitals

225/925-9500 (V/TTY) ....................................... 9-8, 9-40

Nesthurai, Shanker, MD

Boston University Medical Center

Hospital

617/638-7310 ............................................................. 2-31

Newman, Shelia

CESSI

703/448-6155 (V); 703/448-3079

(TTY)........................................................ 7-12, 8-32, 8-33

Nieshoff, Edward, MD

Rehabilitation Institute of Michigan

313/745-9733 ............................................................. 2-80

Nisbet, Jan, PhD

University of New Hampshire

Technology Partnership

603/862-4320 (V/TTY) .............................................. 9-51

Novack, Thomas A., PhD

University of Alabama at Birmingham

205/934-3454 ............................................................. 2-41

O’Day, Bonnie, PhD

CESSI

703/845-3436 ............................................................. 1-29

O’Higgins, Holly Laux

Wisconsin Department of Health

and Family Services (DHFS)

608/266-8905 ............................................................. 9-19

Oberstein, Jill S.

Northern Arizona University

602/728-9532 ...................................................... 9-3, 9-23

Odum, Mark X.

HeiTech Services, Inc.

800/346-2742 (V); 301/459-5900 (V);

301/459-5984 (TTY) .................................................. 6-18

Olkin, Rhoda, PhD

Through the Looking Glass

800/644-2666 ............................................................. 4-12

Orr, Alberta L., MSW

American Foundation for the Blind

212/502-7640 ............................................................. 4-35

Osborne, Joseph

Arlyn Toolworks

717/249-7729 ............................................................. 3-80

Ottenbacher, Kenneth J., PhD

University of Texas

Medical Branch

409/747-1637 ............................................................. 8-28

Parker, Jerry C., PhD

University of Missouri/Columbia

573/884-1499 ...................................................... 2-8, 8-24

Parker Jr., B. Eugene, PhD

Barron Associates, Inc.

434/973-1215 ............................................................. 3-95
Principal Investigators D-13

Parmanto, Bambang, PhD

University of Pittsburgh

412/383-6649 ............................................................. 3-31

Peifer, John

Georgia Centers for Advanced

Telecommunications Technology (GCATT)

404/894-7028 ............................................................... 3-7

Perry, Jacquelin, MD

Rancho Los Amigos

562/401-7177 ............................................................. 2-65

Pickett-Schenk, Susan, PhD

University of Illinois at Chicago

312/422-8180, ext. 17 ................................................. 5-10

Power, Stephen

Mississippi Department of

Rehabilitation Services

800/852-8328 (V/TTY, in state

only); 601/987-4872 (V/TTY) ................................... 9-46

Powers, Laurie, PhD

Oregon Health and Science University

503/232-9154, ext. 104 ............................................... 4-39

Preston, Paul, PhD

Through the Looking Glass

510/848-1112 (V); 800/644-2666 (V); 800/804-

1616 (TTY) ................................................................... 6-2

Ragnarsson, Kristian T., MD

Mount Sinai School of Medicine

212/659-9340 ............................................................. 2-35

Rahman, Tariq, PhD

Alfred I. duPont Institute of the

Nemours Foundation

302/651-6831 ............................................................. 3-42

Rasinski, Paul

Maryland Governor’s Office for

Individuals with Disabilities

800/832-4827 (800/TECH TAP

V/TTY); 410/554-9230 (V/TTY) ............................... 9-42

Razzano, Lisa A., PhD

University of Illinois/Chicago

312/422-8180, ext. 20 ................................................. 4-19

Refsland, Scot Thrane, PhD

VRGIS Corporation

304/288-5313 ............................................................. 3-87

Reinkensmeyer, David, PhD

Rehabilitation Institute Research Corporation

949/824-5218 ............................................................. 3-45

Restrepo-Toro, Maria, MS

Boston University

617/353-3549 ............................................................. 5-11

Ricketts, Todd A., PhD

Vanderbilt University School of

Medicine

615/936-5258 ............................................................. 3-60

Rimmer, James H., PhD

University of Illinois at Chicago

312/413-9651 ............................................................. 3-11

Rintala, Diana H., PhD

Baylor College of Medicine

713/791-1414, ext. 5807............................................. 8-29

Robey, Kenneth L., PhD

Matheny School and Hospital

908/234-0618 ............................................................. 4-34

Robson, Shirley

SVR, Inc.

703/765-7105 (V/Fax) ................................................ 4-48

Rogers, E. Sally, ScD

Boston University

617/353-3549 ............................................................... 4-6

Rogers, Joan, PhD

University of Pittsburgh

412/383-6621 ............................................................. 3-59

Rogers, Sally E., PhD

Boston University

617/353-3549 (V) ....................................................... 8-19

Rosano-Kazckowski, Lisa

New York State Office of Advocate for

Persons with Disabilities

800/522-4369 (V/TTY/Spanish, in state only);

518/474-2825 (V); 518/473-4231 (TTY) ................... 9-54
D-14 Principal Investigators

Rosen, Michael, PhD

MedStar Research Institute

202/877-1554 ............................................................... 3-5

Rosenberg, Steven, PhD

University of Colorado Health

Sciences Center

303/315-0178 ............................................................. 4-16

Rosenthal, Mitchell, PhD

Kessler Medical Rehabilitation

Research and Education Corporation

(KMRREC)

973/243-2015 ...................................................... 2-51, 6-8

Roth, Elliot J., MD

Rehabilitation Institute Research

Corporation

312/238-4637 ............................................................... 2-7

Roush, Daniel

Vcom3D, Inc.

407/737-7310, ext. 115 ...................................... 1-33, 3-71

Roy, Serge H., ScD

Boston University

617/358-0718 ............................................................. 2-78

Rubin, Stanford E., EdD, CRC

Foundation for Rehabilitation Education

and Research

618/536-7704 ............................................................. 4-23

Russinova, Zlatka, PhD

Boston University

617/353-3549 .................................................... 1-21, 8-22

Rymer, W. Zev, MD, PhD

Rehabilitation Institute

Research Corporation

312/238-3919 ........................................... 3-12, 3-45, 8-16

Sable, Janet, PhD

University of New Hampshire

603/862-3401 ............................................................. 2-85

Sack, Sara H., PhD

University of Kansas Center for

Research, Inc.

620/421-8367 ............................................. 3-49, 9-6, 9-38

Sanford, Jon

Georgia Institute of Technology

Center for Assistive Technology

& Environmental Access

404/894-0393 ............................................................... 3-8

Schopp, Laura, PhD

University of Missouri

573/882-8847 ............................................................. 4-32

Schriner, Kay, PhD

Kay Schriner, PhD

479/575-6417 ............................................................... 8-3

Schultheis, Maria T., PhD

Kessler Medical Rehabilitation Research

and Education Corporation (KMRREC)

973/324-3528 ............................................................. 3-55

Schultz, Mark

Nebraska Department of Education

888/806-6287 (V/TTY, in state only);

402/471-0734 (V/TTY);

402/471-0735 (V/TTY) .............................................. 9-49

Schweik, Susan

University of California

510/642-4333 ............................................................. 8-13

Sears, Harold H., PhD

Motion Control, Inc.

801/978-2622; 888/696-2767..................................... 3-84

Seekins, Tom, PhD

University of Montana

888/268-2743 (V, information service only);

406/243-5467 (V/TTY); Rural

Disability Information Network [RUDI]

BBS numbers: 406/243-2318;

800/961-9610 (In MT and WY) ............................ 1-7, 1-8

Seiler, Ron

University of Idaho

800/432-8324 (V/TTY); 208/885-3559

(V/TTY) ...................................................................... 9-34

Sheldon, James R. Jr., Esq.

Neighborhood Legal Services, Inc.

716/847-0650 ............................................................. 6-17

Sherer, Mark, PhD

Methodist Rehabilitation Center

601/364-3448 .................................................... 2-15, 2-48
Principal Investigators D-15

Shiflett, Samuel C., PhD

Beth Israel Medical Center

646/935-2244 ............................................................. 2-88

Shivers, Steve

Alabama Department of Rehabilitation

Services

800/782-7656 (V, in state only);

334/613-3480 (V); 334/613-3519 (TTY) ................... 9-20

Siegel, Martin A., PhD

WisdomTools, Inc.

812/856-4201 ............................................................. 4-47

Silver-Pacuilla, Heidi

520/206-6500 ............................................................. 8-11

Silverstein, Robert

University of Iowa College of Law

202/521-2930 ............................................................... 1-4

Simon, Sheldon R., MD

Ohio State University Research

Foundation

800/784-3425 (V/TTY, in state only); 614/292-

2426 (V/TTY); 614/292-3162 (TTY)......................... 9-58

Sipski, Marca L., MD

University of Miami

305/243-8187 ............................................................. 2-29

Smith, Mieko Kotake, PhD

Cleveland State University

216/687-4738 ............................................................. 1-27

Smith, Roger O., PhD

University of Wisconsin-Milwaukee

414/229-6568 (V); 414/229-5628 (TTY) ................... 3-33

Sohlberg, McKay Moore, PhD

Western Oregon University

541/346-2586 ............................................................. 3-30

Spellman, Charles R., EdD

University of Kansas

800/526-3648 (800/KAN DO IT, in

state only); 316/421-8367 (V/TTY) ........................... 9-38

Sprigle, Stephen H., PhD

Georgia Institute of Technology

404/385-4302 .................................................... 2-70, 3-44

Sprigle, Stephen, PhD

Georgia Institute of Technology

404/385-4302 ............................................................. 3-25

Stapleton, David, PhD

Cornell University

607/255-7727 (V); 607/255-2891 (TTY) ..................... 1-9

Steinfeld, Edward, ArchD

State University of New York

(SUNY) at Buffalo

716/829-3485, ext. 327 ............................................... 3-15

Stock, Steven E.

AbleLink Technologies, Inc.

719/592-0347 ........................................... 3-67, 4-51, 4-53

Stockford, David Noble

Maine CITE Coordinating Center

207/624-6650 (V); 207/624-6800 (TTY)

207/621-3195 (V); 207/621-3482 (TTY) ................... 9-41

Stodden, Robert, PhD

University of Hawaii at Manoa

808/956-9199 ............................................................... 1-3

Stone, John, PhD

State University of New York (SUNY)

at Buffalo

716/829-3141, ext. 125 ................................................. 6-9

Story, Molly

North Carolina State University

707/578-6839 ........................................... 3-17, 3-57, 6-14

Story, Molly Follette, PhD

Marquette University

414/288-7522 ............................................................. 3-22

Stringer, Anthony, PhD

Emory University

404/712-5667 ............................................................. 2-44

Struchen, Margaret, PhD

The Institute for

Rehabilitation and Research (TIRR)

713/666-9550 ............................................................. 2-98

Sudsawad, Pimjai, ScD, OTR

414/229-2630 ............................................................. 8-12
D-16 Principal Investigators

Sutter, Stephen M.

CreateAbility Concepts, Inc.

970/391-8843 ........................................... 3-68, 3-69, 3-88

Szlachcic, Yaga, MD

Los Amigos Research and Education

Institute, Inc. (LAREI)

562/401-7221 ............................................................. 2-64

Takacs, Barnabas, PhD

WaveBand Corporation

310/212-7808 ............................................................. 4-45

Tashjian, Christene

RTI International

919/541-6128 ............................................................. 6-20

Tate, Denise G., PhD

University of Michigan

734/936-7052 ........................................... 2-32, 4-28, 8-23

Taylor, Renee, PhD

University of Illinois/Chicago

312/996-3412 ............................................................. 4-18

Taylor, Steven J., PhD

Syracuse University

315/443-3851 ............................................................. 6-10

Torrie, Mel

Lincoln Laboratories

435/755-2980 ............................................................. 3-94

Trybus, Raymond J., PhD

Alliant University Foundation

858/623-2777, ext. 390 (V) .......................................... 1-2

Tsukamoto, Takuji, PhD

Chemica Technologies, Inc.

541/385-0355 ........................................................... 2-102

Tucker, Julie

Vermont Department of Aging and

Disabilities

800/750-6355 (V/TTY, in state only);

802/241-2620 (V/TTY) .............................................. 9-70

Turnbull, Ann, EdD

University of Kansas

785/864-7600 ...................................................... 5-3, 8-18

Turnbull, H. R., LLM

University of Kansas

785/864-7600 ............................................................... 5-3

Usiak, Douglas J.

The Western New York Independent

Living Project, Inc.

716/836-0822 ............................................................... 4-8

Vandergoot, David, PhD

Center for Essential Management Services

516/827-5960 ............................................................. 1-24

Vanderheiden, Gregg C., PhD

University of Wisconsin/Madison

608/263-5788 .................................................... 3-20, 3-21

Velozo, Craig A., PhD, OTR

University of Florida

352/846-1950; 352/333-3115 ....................................... 5-7

Vessels, Marian S.

TransCen, Inc.

800/949-4232 ............................................................... 7-4

Wade, Shari L., PhD

Children’s Hospital Medical Center

513/636-7480 ............................................................. 4-36

Walker, Sylvia, EdD

Howard University

202/806-8086 ...................................................... 2-6, 4-11

Wallace, Stephen, PhD

San Francisco State University

415/338-6984 ............................................................. 3-38

Ward, Terry, PhD

FAAST, Inc.

800/322-7881 (V/TTY, in state,

information and referral only); 850/487-3278

(V/TTY); 850/487-2850 (TTY/Fax) .......................... 9-30

Warschausky, Seth, PhD

University of Michigan

734/936-7052 ............................................................. 4-27

Waters, Robert L., MD

Los Amigos Research and

Education Institute, Inc. (LAREI)

562/401-7048 ............................................................. 2-26
Principal Investigators D-17

Waters, Robert, MD

Los Amigos Research and Education Institute,

Inc. (LAREI)

562/401-7994; 562/401-7161....................................... 3-2

Watson, Douglas, PhD

University of Arkansas/Little Rock

501/686-9691 ...................................................... 1-1, 1-19

Wehman, Paul, PhD

Virginia Commonwealth University

804/828-1851 (V); 804/828-2494 (TTY) ................... 1-11

Wehmeyer, Michael, PhD

University of Kansas

785/864-0723 ............................................................. 3-27

West, Michael, PhD

Virginia Commonwealth University

804/828-1851 ............................................................. 1-30

Westbrook, John, PhD

Southwest Educational Development

Laboratory

800/266-1832 (V/TTY) .............................................. 6-11

Whitall, Jill, PhD

University of Maryland

410/706-0764 ............................................................. 2-77

White, Glen, PhD

University of Kansas

785/864-4095 ............................................................... 6-6

White, Glen W., PhD

University of Kansas Center for

Research, Inc.

785/864-0590 ............................................................... 4-5

Whiteneck, Gale G., PhD

Craig Hospital

303/789-8204 .................................................... 2-43, 2-67

Wilkomm, Terese, PhD

University of New Hampshire Technology

Partnership

603/862-4320 (V/TTY) .............................................. 9-51

Willems, Chris

Three Rivers Holding, LLC

480/833-1829 ............................................................. 3-62

Wilson, Philip, PhD

Louisiana State University

504/942-8240 ............................................................. 4-26

Winters, Jack, PhD

Marquette University

414/288-7522 ............................................................. 3-22

Wright, Christine

Lucile Packard Children’s Hospitals at Stanford

650/237-9219 ............................................................. 3-36

Wright, Kevin R.

TTAP

800/732-5059; 615/532-3122 (V/TTY) ..................... 9-66

Zafonte, Ross D., DO

University of Pittsburgh

412/648-6979 ............................................................. 2-57

Zhang, Li-Qun, PhD

Rehabilitation Institute of Chicago

312/238-4767 ............................................................. 2-73
Projects by Program Type

E- 1 Projects by Program Type

ADA Technical Assistance Projects

Disability Law Resource Project

(Southwest Disability Business Technical

Assistance Center - Region VI)

(H133D010210) ............................................ 7-7

Great Lakes Disability Business Technical

Assistance Center - Region V

(H133D010203) ............................................ 7-6

Great Plains ADA and Information

Technology Center - Region VII

(H133D010201) ............................................ 7-8

Mid-Atlantic Disability Business Technical

Assistance Center - Region III

(H133D010212) ............................................ 7-4

National ADA Program Assistance

Coordinator (ED-02-CO-0008)................... 7-12

National Center on Accessible Information

Technology in Education

(H133D010306) .......................................... 6-15

New England ADA Center and Universal

Design in Educational IT (Disability and

Business Technical Assistance Center -

Region I) (H133D010211) ............................ 7-2

Northeast Disability and Business Technical

Assistance Center - Region II

(H133D010205) ............................................ 7-3

Northwest ADA/IT Center (Disability

Business Technical Assistance Center -

Region X) (H133D010002) ........................ 7-11

Pacific Disability Business Technical

Assistance Center - Region IX

(H133D010209) .......................................... 7-10

Rocky Mountain Disability Business

Technical Assistance Center - Region VIII

(H133D010004) ............................................ 7-9

Southeast Disability Business Technical

Assistance Center - Region IV

(H133D010207) ............................................ 7-5

Advanced Rehabilitation Research Training

Projects

Advanced Rehabilitation Research Program:

Ed Roberts Fellowship in Disability Studies

(H133P020009) .......................................... 8-13

Advanced Rehabilitation Research Training

(H133P000001) .......................................... 8-26

Advanced Rehabilitation Research Training

(H133P000005) .......................................... 8-17

Advanced Rehabilitation Research Training

(H133P020003) .......................................... 8-29

Advanced Rehabilitation Research Training

Center on Outcomes and Intervention

Effectiveness (H133P020012) .................... 8-25

Advanced Rehabilitation Research Training

for Physicians and Biomedical Engineers

(H133P020004) .......................................... 8-31

Advanced Rehabilitation Research Training

Project in Rehabilitation Services Research

(H133P980014) .......................................... 8-15

Advanced Research Training Program in

Psychiatric Rehabilitation (H133P020011) . 8-22

The Development, Implementation, and

Evaluation of a Research Training Program

in Psychiatric Rehabilitation

(H133P970014) .......................................... 8-19

An Integrated Rehabilitation Engineering

Research Training Program

(H133P990003) .......................................... 8-20

Interdisciplinary Rehabilitation Research

Post-Doctoral Program (H133P020005) ..... 8-14

Interdisciplinary Rehabilitation Research

Training Program (H133P990001).............. 8-28

Rehabilitation Health Services Research

Fellowship Program (H133P990004) ......... 8-21

Rehabilitation Research Training Program

(H133P970004) .......................................... 8-18

Rehabilitation Science for Engineers and

Basic Scientists: An Advanced Training

Program (H133P990006) ............................ 8-16

Research Enrichment Program for

Physiatrists (H133P880009)........................ 8-24

Research Training and Career Development

Program (H133P970003) ........................... 8- 30

Research Training in Rehabilitation Science

with Special Emphasis on Disability Studies

(H133P970013) .......................................... 8-27

The UMHS/MSU/AACIL Rehabilitation

Research Training Program

(H133P990014) .......................................... 8-23

Alternative Financing Programs

Alternative Financing Program

(H224C000001) .......................................... 9-12
E-2 Projects by Program Type

Alternative Financing Program

(H224C000003) .......................................... 9-17

Alternative Financing Program

(H224C000004) .......................................... 9-14

Alternative Financing Technical Assistance

Project (H224C000200) .............................. 9-16

The Arizona Loans for Assistive

Technology Program (AzLAT)

(H224C010008) ............................................ 9-3

Arkansas Technology Alternative Financing

Project (AFP) (H224C010009) ..................... 9-4

Assistive Technology for Kansans

Alternative Financing Program

(H224C000011) ............................................ 9-6

The Assistive Technology Guaranteed Loan

Program: Partnerships for Maximum AT

Access (H224C010016).............................. 9-10

The Assistive Technology Guaranteed Loan

Program: Partnerships for Maxium AT

Access (H224C000009) ................................ 9-9

Loan Initiative Networking Kentuckians for

Assistive Technology (LINK-AT)

(H224C010021) ............................................ 9-7

Louisiana Alternative Financing Program

(H224C010024) ............................................ 9-8

Michigan Assistive Technology Loan Fund

(H224C010015) .......................................... 9-11

Minority Outreach Program for Alternative

Financing for Assistive Technology

(H224C010025) .......................................... 9-13

Techconnect Low Interest Loan Program:

Alternative Financing Program

(H224C010022) ............................................ 9-5

Utah Alternative Financing Program for

Assistive Technology (H224C010013) ....... 9-15

Virginia Alternative Financing Program

(H224C010003) .......................................... 9-18

WisLoan: A Loan Guaranty Program to

Provide Low Interest Loans to Wisconsin

Residents with Disabilities for Purchasing

Assistive Technology (H224C010017) ....... 9-19

Assistive Technology Technical Assistance

Projects

Assistive Technology Act Data Collection

Project (H224B990001) ................................ 9-1

assitivetech.net - Internet Site on Assistive

Technology (H224B020002) ...................... 6-16

National Assistive Technology Advocacy

Project (H224B020004) .............................. 6-17

Technical Assistance Project

(H224B020001) ............................................ 9-2

Disability and Rehabilitation Research

Projects

Access to Health Care Services for Persons

with Disabilities: Defining the Barriers and

Strategies for Change (H133A990014) ....... 2-14

Advancing Assistive Technology Outcomes

(H133A010401) .......................................... 3-29

Assistive Technology and Cognitive

Disabilities (H133A010607) ....................... 3-32

Assistive Technology in the Community

(H133A010701) .......................................... 3-28

ATOMS Project: Assistive Technology

Outcomes Measurement System

(H133A010403) .......................................... 3-33

Carolinas Traumatic Brain Injury

Rehabilitation and Research System

(CTBIRRS) (H133A020522) ..................... 2-53

Center for International Rehabilitation

Research Information and Exchange

(CIRRIE) (H133A990010) ........................... 6-9

Center for Minority Training and Capacity

Building for Disabilities Research

(H133A990024) ............................................ 8-2

Collaboration of Upper Limb Pain in Spinal

Cord Injury (H133A011107) ....................... 2-17

Collaborative Study of Impaired SelfAwareness After Traumatic Brain Injury

(H133A980067) .......................................... 2-15

Community Research for Assistive

Technology (H133A010702) ...................... 3-24

Disability and Rehabilitation Research

Project to Disseminate Independent Living

Research Information Through the Mass

Media to Persons with Disabilities

(H133A980045) ............................................ 6-4

Effects of Methylphenidate on Working

Memory and Cerebral Glucose Metabolism

in Persons with Severe Traumatic Brain

Injury (H133A980073) ............................... 2-18
E- 3 Projects by Program Type

Emergent Disability, Systems Change, and

Employment of People with Disabilities

(H133A021503) ............................................ 5-5

A Four-Year Research and Demonstration

Project to Address Ways to Improve the

Employment Practices Covered by Title I of

the Americans with Disabilities Act (ADA)

(H133A970005) .......................................... 1-18

Georgia Model Brain Injury System

(GAMBIS) (H133A980028) ...................... 2-44

I.T. Works (H133A011803) ........................ 1-14

Ideas for the New Millennium

(H133A990006) ............................................ 6-3

Improving Research Information

Dissemination and Utilization to Promote

Independent Living (The RIIL Project)

(H133A980048) ............................................ 6-6

Information Technology for Independence:

Community-Based Research

(H133A021916) .......................................... 3-31

Information Technology Technical

Assistance and Training Center (ITTATC)

(H133A000405) .......................................... 3-25

JFK-Johnson Rehabilitation Institute TBI

Model System (H133A020518) .................. 2-50

Johns Hopkins University Burn Injury

Rehabilitation Model System (JHU-BIRMS)

(H133A020101) .......................................... 2-20

Leadership Development: A New

Generation of Effective Leadership

(H133A990020) .......................................... 4-11

Lifetime Outcomes and Needs: Refining the

Understanding of Aging with Spinal Cord

Injury (H133A011108)................................ 2-12

Mayo Clinic Traumatic Brain Injury Model

System (H133A020507) ............................. 2-47

Mental Retardation and Technology

Disability and Rehabilitation Research

Project (H133A010602).............................. 3-27

Missouri Model Traumatic Brain Injury

System (MOMBIS) (H133A980008) ......... 2-49

Model Distance-Learning Computer

Training Program for Blind and Visually

Impaired Individuals (H133A010104) ........ 1-13

Model Spinal Cord Injury Systems

Dissemination Center (H133A011501) ....... 6-12

Model System for Burn Injury Rehabilitation

(H133A970023) .......................................... 2-21

The Moss Traumatic Brain Injury Model

System (H133A020505) ............................. 2-56

National Center for the Dissemination of

Disability Research (NCDDR)

(H133A990008) .......................................... 6-11

National Resource Center for Parents with

Disabilities (H133A980001) ......................... 6-2

National Resource Center on Supported

Living and Choice for People with Mental

Retardation and Developmental Disabilities

(H133A990001) .......................................... 6-10

National Spinal Cord Injury Statistical

Center (H133A011201) ................................ 6-1

New York Traumatic Brain Injury Model

System (NYTBIMS) (H133A020501) ....... 2-52

North Texas Burn Rehabilitation Model

System (NTBRMS) (H133A020104) ......... 2-22

North Texas Traumatic Brain Injury Model

System (NT-TBIMS) (H133A020526) ....... 2-58

Northern California Traumatic Brain Injury

Model System of Care (H133A020524) ..... 2-42

Northern New Jersey Traumatic Brain Injury

System (NNJTBIS)/NIDRR TBI Model

Systems National Database

(H133A980030) .......................................... 2-51

Ohio Regional TBI Model System

(H133A020503) .......................................... 2-54

Oregon Traumatic Brain Injury Model

System (H133A980027) ............................. 2-55

Pediatric Burn Injury Rehabilitation Model

System (H133A020102) ............................. 2-23

Persons Aging with Hearing and Vision

Loss (H133A020701) ................................. 1-16

Pharmacological Management of

Dyslipidemia and Cardiovascular Disease in

Persons with Chronic Cervical SCI: A

Multicenter Collaborative Trial

(H133A011115) .......................................... 2-13

Preparing Avenues for Competitive

Employment in Information Technology

(PACE-IT) Project (H133A011802) ........... 1-17

The Rocky Mountain Regional Brain Injury

System (RMRBIS) (H133A020510) .......... 2-43
E-4 Projects by Program Type

Southeastern Michigan Traumatic Brain

Injury System (SEMTBIS)

(H133A020515) .......................................... 2-46

The Spaulding/Partners TBI Model System

at Harvard Medical School

(H133A020513) .......................................... 2-45

TECH CONNECTIONS: Improving the

Utilization of Existing and Emerging

Rehabilitation Technology in the State

Vocational Rehabilitation Program

(H133A980052) ............................................ 6-5

Technology for Independence: A

Community-Based Resource Center

(TI:CBRC) (H133A021801) ...................... 3-26

Think and Link: Email for Individuals with

Cognitive Disabilities (H133A010610)....... 3-30

Traumatic Brain Injury Model System

(H133A020516) .......................................... 2-59

Traumatic Brain Injury Model System of

Mississippi (TBIMSM) (H133A020514) .... 2-48

Traumatic Brain Injury National Data

Center (H133A011403) ................................ 6-8

Treatment of Shoulder Dysfunction in Polio

Survivors and Elderly Adults with Lower

Extremity Impairment (H133A000101) ...... 2-16

UAB TBI Model System (H133A020509) . 2-41

UCHSC Burn Model System Data

Coordination Center (BMS/DCC)

(H133A020402) .......................................... 2-19

University of Pittsburgh Brain Injury Model

System (UPBI) (H133A020502) ................ 2-57

University of Washington Burn Injury

Rehabilitation Model System

(H133A020103) .......................................... 2-24

University of Washington Traumatic Brain

Injury Model System (H133A020508) ....... 2-60

Wayfinding Technologies for People with

Visual Impairments: Research and

Development of an Integrated Platform

(H133A011903) .......................................... 3-23

Web Accessibility Initiative, Phase II

(H133A000500) ............................................ 6-7

Working It Out Together: Women with

Disabilities and Employment

(H133A010106) .......................................... 1-15

Fellowships (Distinguished)

An Analysis of ADA Title Protections

After the Sutton Decisions (H133F020010) .. 8-3

Clinical Supervision Within the StateFederal Vocational Rehabilitation Program:

A Combined Qualitative and Quantitative

Analysis (H133F020007) .............................. 8-9

A Comprehensive Survey of the Status of

Distance Education in Rehabilitation

Counseling (H133F020004) ......................... 8-7

The Effects of Inclusive and Traditional

Educational Programs for Students with

Disabilities on Postsecondary Outcomes

(H133F020013) ............................................ 8-4

Improving Outcomes for Individuals Who

Are Low-Functioning Deaf (H133F020002) 8-8

Predictors of Functional Outcomes and

Needs of Children and Youth with

Acquired Brain Injuries upon Discharge

from Inpatient Rehabilitation

(H133F020022) ............................................ 8-5

The Self-Advocacy Movement: A History

of the Unacknowledged Civil Rights

Movement (H133F020012) .......................... 8-6

Use of Low Vision Assistive Devices:

Exploring the Decision-Making Process

of Older Adults with Visual Impairments

(H133F020028) .......................................... 8-10

Fellowships (Merit)

Assistive Technology and Adult Literacy:

Bridging the Gap for Adults with Learning

Disabilities (H133F020025) ........................ 8-11

Developing a Social Validation Model for

Effective Utilization of Disability and

Rehabilitation Research (H133F020023) .... 8-12

Field Initiated Projects (FIPs)

ABC-Link: A Web-Based Literacy

Assessment Tool for Students with

Significant Disabilities (H133G020133) ..... 3-56

Access Solutions for Rich Media: Tools,

Pathways, and Resources

(H133G000109) .......................................... 3-51

Access to Convergent Media

(H133G990105) .......................................... 3-50
E- 5 Projects by Program Type

Access to Digital Television

(H133G010170) .......................................... 3-52

Acupuncture as an Adjunctive Treatment in

Stroke Rehabilitation (H133G000120) ....... 2-88

Aging After Spinal Cord Injury: Three

Decades of Longitudinal Research

(H133G010009) .......................................... 2-69

An Analysis of the Demography of Living

Standards, Health, and Poverty of Persons

with a Disability Living in Third World

Nations Based on Data from the World

Bank (H133G010139) .................................. 5-9

Assessment of Social Communication

Abilities Following Traumatic Brain Injury

(H133G010152) .......................................... 2-98

Automatic Generation of Optimal Tactile

Graphics (H133G020103) ......................... 3- 39

Beyond the Text: Access to Images,

Audio, and Multimedia in eBooks

(H133G020091) .......................................... 3-53

Bilateral Arm Training in Patients with

Chronic Hemiparesis (H133G010111) ........ 2-77

The Braille Power Reader Program

(H133G010028) .......................................... 3-61

Cardiovascular Disease in Women with

Spinal Cord Injury and Its Effect on

Participation in Community Activities

(H133G010160) .......................................... 2-64

Catecholaminergic Modulation of Working

Memory in Traumatic Brain Injury: An

fMRI Study of the Effects of D2

Dopaminergic and Alpha-2 Adrenergic

Agonistics (H133G000136) ........................ 2-86

Community Environmental Assessment

Project: A Multi-Method Approach to

Identify Barriers, Assets, and Engage

Communities for Change

(H133G020125) .......................................... 4-40

Community Participation After Spinal Cord

Injury: Idioms of Beliefs and Behaviors

(H133G020151) .......................................... 4-30

Community Reintegration and Quality of

Life Following Traumatic Brain Injury

(H133G990221) .......................................... 2-89

Comparison of Two Employment Models

for Consumers with Severe Mental Illness

(H133G990155) .......................................... 1-20

Computer Training Materials for DeafBlind Individuals (H133G020196) ............. 3-48

Consumers’ Participation in Nursing Home

Decision-making Preferences and

Perceptions (H133G000068) ...................... 2-75

Cost Effectiveness of a Computerized Oral

Reading Treatment for Aphasia

(H133G010098) .......................................... 3-47

Daily Living Context and Pressure Sores in

Consumers with Spinal Cord Injury

(H133G000062) .......................................... 2-66

Determining the Effectiveness of a

Capacity-Building Program for Individuals

with Chronic Fatigue Syndrome

(H133G010136) .......................................... 4-18

Developing a Rehabilitation Service

Delivery Model for Minority Farmers with

Disabilities (H133G000192) ....................... 2-62

Developing and Evaluating an Interactive

Tool to Support Literacy Learning in

Adolescents with Severe Speech and

Physical Impairments (H133G990501) ....... 2-84

Development of a Pressure Ulcer

Prevention Beliefs Instrument for Persons

with Spinal Cord Injury (H133G010058) ... 2-74

Development of a Rehabilitator for Arm

Therapy After Brain Injury

(H133G980052) .......................................... 3-45

The Development of a Tool to Enhance

Communications Between Blind and

Sighted Mathematicians, Students, and

Teachers: A Global Translation Appliance

(H133G010046) .......................................... 3-43

Development of a Transitional OrthoTherapeutic Walker (TOTWalker) for

Preschool Children with Physical

Disabilities (H133G990103) ....................... 3-36

The Development of a Valid System for

Measuring Rehabilitation Service Outcomes

(H133G990137) .......................................... 4-23

Development of an Intelligent Therapeutic

Stretching Device for Stroke Patients

(H133G010066) .......................................... 2-73

Development of Methods to Monitor

Functional Tasks (H133G020108) .............. 2-78
E-6 Projects by Program Type

Development of Valid and Reliable

Measures of Postural Stability

(H133G020240) .......................................... 2-70

Differences in Mental Health Service

Satisfaction Among Clients Interviewed by

Consumer and Non-Consumer Researchers

Using Computer- Assisted Personal I

nterview (CAPI) Technology

(H133G020027) .......................................... 5-10

Disability Law Knowledge Management

System: A One-Stop Clearinghouse for

Disability Information (H133G000221) ...... 6-13

Disability Rights and the Independent

Living Movement: The Formative Years

Nationwide (H133G000083) ........................ 5-6

The Effect of Ankle-Foot Orthotic Design

on Hemiplegic Gait (H133G000004) .......... 3-34

Effect of Electrical Stimulation on Brain

Reorganization in Subjects with Stroke

(H133G010077) .......................................... 2-81

The Efficacy of Computer and Sense Wear

Technologies for Promoting Health in

Adults with Fibromyalgia: A Randomized

Clinical Trial (H133G020159) .................... 3-59

Empowering Persons with a Spinal Cord

Injury Through a Shared Decision-Making

Program (H133G020029) ........................... 2-92

Enabling Self-Determination for People

Living with AIDS (H133G020217) ............ 4-22

Enhanced Upper Limb Motor Control by

Reduced Synergistic Muscle Patterns and

Spasticity After Chemodenervation

(H133G020112) ........................................ 2-100

Equiprecise Measurement for ICIDH-2

Classification of Activity: An Innovative

Solution for Evaluating the Worldwide

Incidence and Prevalence of Disability

(H133G000227) ............................................ 5-7

Evaluating Independent Living Outcomes

for Blind and Visually Impaired Older

People: Development of a Nationally

Standardized Minimum Dataset (NSMD)

(H133G010183) .......................................... 4-35

Evaluation of Voucher Alternatives for

Early Intervention Developmental Disability

Services (H133G980121) ........................... 4-16

An Exploratory Study of the Factors

Determining the Vocational Recovery of

People with Psychiatric Disabilities

(H133G010113) .......................................... 1-21

Exploring Universal Design: Developing

and Disseminating Universal Design

Education Material Online

(H133G000025) .......................................... 6-14

Factors Affecting Directional Hearing Aid

Performance in Children (H133G020097) .. 3-60

A Family Intervention Following

Traumatic Brain Injury in Children

(H133G990069) .......................................... 4-36

Functional Assessment and Treatment of

Neurogenic Hypotension Due to Spinal

Cord Injury (H133G020128) ...................... 2-80

Getting A Life: Research on Individual and

Person-Centered Planning Processes in

Oregon (H133G010167)............................. 4-38

Health Promotion for Women Aging with

Disability (H133G000226) ........................ 2- 97

Healthy Lifestyles Evaluation Project

(H133G020231) .......................................... 4-41

Home-Based Tracking Training to

Stimulate Neuroplasticity and Improve

Function in Stroke (H133G020145) ........... 2-83

Home-Based Video-Counseling for Rural

At-Risk Adolescents with Epilepsy and

Their Parents: An Accessibility and

Outcome Analysis (H133G990500) ........... 4-17

Identifying Social Integration Needs During

Transition to Adulthood Following

Traumatic Brain Injury (H133G000038)..... 4-27

The Impact of Managed Care on

Rehabilitation Services and Outcomes for

Persons with Spinal Cord Injury

(H133G990220) .......................................... 2-90

Improving Muscular Use and CardioRespiratory Demand in Spinal-CordInjured Patients Performing Functional

Electronically Stimulated Leg Cycle

Ergonometry (H133G020137) .................... 2-63

Improving the Health Care Encounter for

Persons Who Have Developmental

Disabilities (H133G010153) ....................... 4-34
E- 7 Projects by Program Type

Increasing States’ Allocations of Medicaid

Dollars to Community- Based Care: Where

Might Policy Intervene? (H133G010023) ... 2-76

Independent Living for People with

Psychiatric Disabilities: Using Contextual

Cues to Remove Environmental Barriers

(H133G000152) .......................................... 4-24

Information Technology Access for Adults

with Cognitive Disabilities: Participatory

Development of a Model for Software

Accessibility, Training, and Support

(H133G010162) .......................................... 3-58

Integration at Home: Strengthening Family

Relationships of Adults with Disabilities

(H133G020146) .......................................... 4-21

Interventions to Improve Memory in

Patients with Multiple Sclerosis

(H133G990058) .......................................... 2-91

Investigation of the Dynamics of Spasticity

in Children with Cerebral Palsy

(H133G010041) .......................................... 2-68

Job Retention Factors for Homeless People

with Significant Disabilities

(H133G020092) .......................................... 1-22

The Learning and Transfer of Prosthetic

Control (H133G000024)............................. 3-38

Louisiana Community Housing Advocacy

Network (LA-CHAN) (H133G020211) ..... 4-26

Louisiana’s Self-Determination Research

Project (H133G990169).............................. 4-25

Measuring Employer Openness to Hiring

People with Disabilities: Development of

Expanded Labor Market Survey

(H133G000028) .......................................... 1-25

Medication Management and Successful

Work Transition in Persons with HIV/AIDS

(H133G000195) .......................................... 1-24

Men’s Personal Assistance Services Abuse

Research Project (H133G010040) .............. 4-39

Middle School Phonemic Awareness Study

(H133G000142) .......................................... 4-43

Mortality and Life Expectancy After

Traumatic Brain Injury Rehabilitation

(H133G020182) .......................................... 2-67

Moving Out of the Nursing Home and to

the Community: Examining and Effecting

Social Change (H133G010033) .................. 4-20

Multi-Family Group Intervention for

Traumatic Brain Injury and Spinal Cord

Injury Patients and Families

(H133G020006) .......................................... 4-44

National Study on the Impact of SSI

Redetermination of 18-Year-Old Youth with

Disabilities on Employment, Independent

Living, and Community Participation

Outcomes (H133G000201)......................... 4-31

Neuromuscular Reorganization to Improve

the Control of Artificial Limbs

(H133G990074) .......................................... 3-46

Neuropsychological Functioning and

Psychosocial Adjustment in Adolescents

with Spina Bifida and NLD

(H133G000134) .......................................... 4-37

Occupational Therapy Evaluation and

Training Module to Guide Practice with

Parents with Physical Disabilities

(H133G010054) .......................................... 4-13

Opening the “Black Box”: The Content and

Process of Learning in Inpatient Traumatic

Brain Injury Rehabilitation

(H133G020052) .......................................... 2-95

Optimizing Assistive Technology Service

with Video Teleconferencing

(H133G990087) .......................................... 3-37

Optimizing Posture, Trunk Control, and

Reach of Wheelchair Users

(H133G010193) .......................................... 3-44

Parents with Disabilities and Their

Adolescent Children (H133G990130) ........ 4-12

PeerLink: Empowering Persons with

Disabilities to Manage Their Own Information

(H133G020065) .......................................... 4-32

Personalized Health Care for Individuals

with Physical Disabilities: Satisfaction with

Services and Outcomes (H133G010064) .... 2-82

Personalized Synthetic Speech Using

ModelTalker: Development and Evaluation

(H133G990182) .......................................... 3-40

The Physiologic Basis of Functional

Electrical Stimulation on Muscle Atrophy

in Acute Spinal Cord Injury

(H133G980100) .......................................... 2-93

Project PATH (Promoting Access,

Transition, and Health) (H133G000150) .... 2-85
E-8 Projects by Program Type

Promoting the Practice of Universal Design

(H133G980060) .......................................... 3-57

Quality of Life for Persons with a Spinal

Cord Injury: A Qualitative Longitudinal

Study (H133G990219) ............................... 4-29

Quantified Custom Inserts: An Amputation

Prevention Program for Diabetic Patients

(H133G020002) .......................................... 2-65

Quantitative Study of Anterior and Posterior

Walker Usage Dynamics in Children with

Cerebral Palsy (H133G010069).................. 2-99

Randomized Controlled Trial of AntiFatiguing Exercise to Improve Function in

Multiple Sclerosis Patients

(H133G010132) .......................................... 2-87

Re-Defining Wholeness: Formulating a

Minority Group Model of Disability Identity

Development (H133G990110) ...................... 5-8

Reaching Hard of Hearing Workers in the

Mainstream: Implications for Consumers

and Service Professionals

(H133G010156) .......................................... 1-19

Rehabilitation Readiness Tool for Latinos

with Psychiatric Disabilities

(H133G020181) .......................................... 5-11

The Relationship Between Early

Experiences and Development in Young

Children with Severe Visual Impairments:

A Cross-Cultural Perspective

(H133G980119) .......................................... 4-14

Repetitive Intensive Training Exercise:

Effect on Upper Extremity Motor Function

in Spasticity (H133G000058) ..................... 2-79

Resolving ADA Employment

Discrimination Charges (H133G000132) ... 1-26

Reusing AT/DME Acquired Through

Public Funds: Developing a Cost- Neutral,

Consumer-Driven Program

(H133G010102) .......................................... 3-49

Robust, Low-Cost, Refreshable Braille

Display (H133G000047) ............................ 3-35

Secondary Analyses of Persons with

Disabilities in the 1994-1995 Disability

Supplement to the National Health Interview

Survey and in 1999 and 2000 NHIS

 Surveys (H133G020037) ........................... 5-12

Secondary Prevention Trial of Exercise and

Diet for Improvement of Physical Fitness,

Independence, and Overall Health in Adult

Paraplegics (H133G990143)....................... 2-72

Self-Employment Development for

Individuals with Traumatic Brain Injury

(H133G020215) .......................................... 1-28

Self-Employment Technology Transfer

(SETT) (H133G000189) ............................ 1-23

Shake It Up for Alcohol and Substance Use

Reduction! Health Promotion and Capacity

Building for Persons with Traumatic Spinal

Cord Injuries (H133G010094) .................... 2-96

A Six-Year Longitudinal Study of

Community Integration, Subjective WellBeing, and Health After Spinal Cord Injury:

Relationship with Gender, Race/Ethnicity,

and Environmental Factors

(H133G020218) .......................................... 5-14

Specifying the Facilitative Effects of

Animation on the Understanding of Action

Word Representatives (H133G990115) ...... 3-41

The SPIRATE Project (Spinal Injury Risk

Assessment for ThromboEmbolism)

(H133G990046) .......................................... 2-71

Strategies People with Psychiatric

Disabilities Use to Maintain Employment

and Build Careers (H133G020116) ............ 1-29

Stress and Coping over the Life Course: A

Perspective on Women with Spinal Cord

Injury (H133G020060) ............................... 4-28

Survey of Home Ownership Nationwide

(H133G000034) .......................................... 4-33

Telework as an Accommodation for

Employees with Disabilities: Developing

Prediction Models for Successful and

Satisfying Careers (H133G020158) ............ 1-30

Total Community Immersion Model for

Postsecondary-Age Students with

Significant Disabilities: An OutcomeBased Approach to Transition

(H133G020184) .......................................... 4-15

The Transition of Pediatric Burn Survivors

into Adulthood (H133G990052)................. 4-42

Traumatic Brain Injury Rehabilitation: The

Argentina Project (H133G000154) ............. 2-94
E- 9 Projects by Program Type

University of Illinois at Chicago Mental

Health Services Research Program

Medication Adherence Program Study

(UIC-MAPS) (H133G010093) ................... 4-19

An Upper Limb Orthosis for People with

Muscular Dystrophy (H133G000117) ........ 3-42

Use of Propranolol to Manage Behavioral

Dysfunction and Agitation in Persons with

Postacute Brain Injury (H133G000072) ..... 2-61

The Use of Virtual Reality Technology for

Assessment of Driving Skills Following

Acquired Brain Injury (H133G000073) ...... 3-55

Utilization and Analysis of Census 2000

Data to Inform Disability Advocacy and

Employment Policy (H133G020117) .......... 5-13

Variables Associated with Vocational

Success Among Persons with Severe

Mental Illness: An Empirical Study

(H133G990036) .......................................... 1-27

Word for Word: Developing an Enhanced

Tool for Individuals with Disabilities

(H133G000204) .......................................... 3-54

Model Spinal Cord Injury Systems

Demonstration of a Model Spinal Cord

Injury System Center (H133N000023) ....... 2-36

Georgia Regional Spinal Cord Injury Care

System (H133N000005) ............................. 2-30

Missouri Model Spinal Cord Injury System

(H133N000012) .......................................... 2-33

Model Spinal Cord Injury System

(H133N000007) .......................................... 2-27

Mount Sinai Spinal Cord Injury Model

System (H133N000027) ............................. 2-35

The New England Regional Spinal Cord

Injury Center (H133N000024).................... 2-31

Northern New Jersey Spinal Cord Injury

System (H133N000022) ............................. 2-34

Northwest Regional Spinal Cord Injury

System (H133N000003) ............................. 2-40

Regional Spinal Cord Injury Care System

of Southern California (H133N000029) ..... 2-26

The Rocky Mountain Regional Spinal Injury

System (H133N000001) ............................ 2- 28

South Florida Regional Spinal Cord Injury

Model System (H133N000017) .................. 2-29

Texas Model Spinal Cord Injury System

(H133N000004) .......................................... 2-38

UAB Model Spinal Cord Injury Care

System (H133N000016) ............................. 2-25

University of Michigan Model Spinal Cord

Injury Care System (H133N000009) .......... 2-32

University of Pittsburgh Model Center on

Spinal Cord Injury (H133N000019) ........... 2-37

VCU Model Spinal Cord Injury Center

(H133N000015) .......................................... 2-39

NIDRR Contracts

Technical Support for Assessment of

Management and Ancillary Activities of the

National Institute on Disability and

Rehabilitation Research

(ED-00-CO-0079) ....................................... 8-33

Technical Support for Computer and Other

Related Activities (ED-98- CO-0004)......... 8-32

Technical Support for Data Collection

Development: Implementation of NIDRR’s

Web-Based Performance Reporting System

Data Collection (ED-01- CO-0052) ............ 6-20

Rehabilitation Engineering Research Centers

(RERCs)

Rehabilitation Engineering and Research

Center (RERC) on Universal Design and

the Built Environment at Buffalo

(H133E990005) .......................................... 3-15

Rehabilitation Engineering Research Center:

Improved Technology Access for Land

Mine Survivors (H133E980031)................. 3-10

Rehabilitation Engineering Research Center

on Accessible Medical Instrumentation

(H133E020729) .......................................... 3-22

Rehabilitation Engineering Research Center

on Communication Enhancement

(H133E980026) .......................................... 3-16

Rehabilitation Engineering Research Center

on Ergonomic Solutions for Employment

(H133E980007) .......................................... 3-13

Rehabilitation Engineering Research Center

on Hearing Enhancement (H133E010107) ... 3-4
E-10 Projects by Program Type

Rehabilitation Engineering Research Center

on Information Technology Access

(H133E980008) .......................................... 3-20

Rehabilitation Engineering Research Center

on Mobile Wireless Technologies for

Persons with Disabilities (H133E010804) .... 3-7

Rehabilitation Engineering Research Center

on Prosthetics and Orthotics

(H133E980023) ............................................ 3-9

Rehabilitation Engineering Research Center

on Recreational Technologies and Exercise

Physiology Benefiting Persons with

Disabilities (RERC Rec-Tec)

(H133E020715) .......................................... 3-11

Rehabilitation Engineering Research Center

on Technology for Successful Aging

(H133E010106) ............................................ 3-6

Rehabilitation Engineering Research Center

on Technology Transfer (H133E980024) ... 3-14

Rehabilitation Engineering Research Center

on Telecommunication Access

(H133E990006) .......................................... 3-21

Rehabilitation Engineering Research Center

on Telerehabilitation (H133E990007) ........... 3-5

Rehabilitation Engineering Research Center

on Wheelchair Transportation Safety

(H133E010302) .......................................... 3-19

Rehabilitation Engineering Research Center

on Wheeled Mobility (H133E990001)........ 3-18

Rehabilitation Engineering Research Center

on Workplace Accommodations

(H133E020720) ............................................ 3-8

Rehabilitation Engineering Research Center

(RERC) on Universal Design and the Built

Environment at NCSU (H133E990002) ..... 3-17

RERC on Rehabilitation Robotics and

Telemanipulation: Machines Assisting

Recovery from Stroke (MARS)

(H133E020724) .......................................... 3-12

RERC on Spinal Cord Injury: Keep Moving:

Technologies to Enhance Mobility and

Function for Individuals with Spinal Cord

Injury (H133E020732) .................................. 3-2

Smith-Kettlewell Rehabilitation Engineering

Research Center (H133E001002) ................. 3-3

Technologies for Children with Orthopedic

Disabilities (H133E003001).......................... 3-1

Rehabilitation Research and Training Centers

(RRTCs)

Access to Rehabilitation and Empowerment

Opportunities for Minority Persons with

Disabilities (H133B000903) ......................... 2-6

American Indian Rehabilitation Research

and Training Center (H133B980049) ........... 5-1

The Consortium for Children and Youth

with Disabilities and Special Health Care

Needs (H133B001200) ................................. 2-5

Disability Statistics Rehabilitation Research

and Training Center (H133B980045) ........... 5-2

Managed Health Care for Individuals with

Disabilities (H133B970003) ......................... 2-4

Missouri Arthritis Rehabilitation Research

and Training Center (MARRTC)

(H133B980022) ............................................ 2-8

Multiple Sclerosis Rehabilitation Research

and Training Center (H133B980017) ......... 2-11

National Center for the Study of

Postsecondary Educational Supports: A

Rehabilitation Research and Training Center

(H133B980043) ............................................ 1-3

Rehabilitation Research and Training Center

for Children’s Mental Health

(H133B990022) ............................................ 4-3

Rehabilitation Research and Training Center

for Community Integration of Persons with

Mental Retardation (H133B980047) ............. 4-7

Rehabilitation Research and Training Center

for Economic Research on Employment

Policy for Persons with Disabilities

(H133B980038) ............................................ 1-9

Rehabilitation Research and Training

Center: Health and Wellness Consortium

(H133B990019) ............................................ 2-9

Rehabilitation Research and Training Center

in Neuromuscular Diseases

(H133B980008) ............................................ 2-2

Rehabilitation Research and Training Center

in Rehabilitation of Persons with Long-Term

Mental Illness (H133B990023) ..................... 4-6

Rehabilitation Research and Training Center

on Aging with a Disability (H133B980024) . 2-3

Rehabilitation Research and Training Center

on Aging with Developmental Disabilities

(H133B980046) ............................................ 4-4
E- 11 Projects by Program Type

Rehabilitation Research and Training Center

on Community Rehabilitation Programs to

Improve Employment Outcomes

(H133B980040) .......................................... 1-12

Rehabilitation Research and Training Center

on Drugs and Disability (H133B970018) ... 1-10

Rehabilitation Research and Training Center

on Full Participation in Independent Living

(H133B000500) ............................................ 4-5

Rehabilitation Research and Training Center

on Improving Vocational Rehabilitation

Services for Individuals Who Are Deaf or

Hard of Hearing (H133B010501) ................. 1-1

Rehabilitation Research and Training Center

on Independent Living Management

(RRTC-ILM) (H133B000002) ..................... 4-8

Rehabilitation Research and Training Center

on Measuring Rehabilitation Outcomes

(H133B990005) ............................................ 5-4

Rehabilitation Research and Training Center

on Personal Assistance Services (PAS)

(H133B970008) ............................................ 4-1

Rehabilitation Research and Training Center

on Policies Affecting Families of Children

with Disabilities (H133B980050) ................. 5-3

Rehabilitation Research and Training Center

on Positive Behavior Support

(H133B980005) ............................................ 4-2

Rehabilitation Research and Training Center

on Rehabilitation Interventions Following

Traumatic Brain Injury (H133B990014) ..... 2-10

Rehabilitation Research and Training Center

on Rural Rehabilitation Services

(H133B970017) ............................................ 1-7

Rehabilitation Research and Training Center

on Rural Rehabilitation Services

(H133B030501) ............................................ 1-8

Rehabilitation Research and Training Center

on Secondary Conditions of Spinal Cord

Injury: Promoting General Health, WellBeing, and Community Integration Through

Home-Based, Self-Directed Care

(H133B980016) ............................................ 2-1

Rehabilitation Research and Training Center

on State Systems and Employment

(H133B980037) ............................................ 1-5

Rehabilitation Research and Training

Center

on Stroke Rehabilitation (H133B980021) ..... 2-7

Rehabilitation Research and Training

Center on the Community Integration of

Individuals with Traumatic Brain Injury

(H133B980013) ............................................ 4-9

Rehabilitation Research and Training

Center on Workforce Investment and

Employment Policy for Persons with

Disabilities (H133B010102) ......................... 1-4

Rehabilitation Research and Training

Center on Workplace Supports

(H133B980036) .......................................... 1-11

Rehabilitation Research and Training

Center to Improve Services for Children

with Serious Emotional and Behavioral

Disabilities and Their Families

(H133B990025) .......................................... 4-10

Research and Training Center for Persons

Who Are Hard of Hearing or Late

Deafened (H133B970016) ............................ 1-2

RRTC on Improving Vocational

Rehabilitation Services for Individuals

Who Are Blind or Have Severe Visual

Impairments (H133B010101) ....................... 1-6

UIC National Research and Training

Center on Psychiatric Disability

(H133B000700) ............................................ 8-1

Small Business Innovative Research (SBIR)

Phase I

Absolute Head Pointing for Accessing

Assistive Devices (H133S020106) ............. 3-63

Assessing, Teaching, and Testing Young

Children with Disabilities (H133S020148) . 3-64

Automated Telephone Survey with Speech

Recognition (H133S020033) .................... 2-103

Baby Rubrics (H133S020099).................... 4-48

Developing a Versatile, Affordable,

Wheelchair-Mounted Robotic Arm Based

on the Arlyn FeederBot Design

(H133S020121) .......................................... 3-80

Development of a Collapsible Folding

Manual Wheelchair (H133S020103) .......... 3-62
E-12 Projects by Program Type

Development of a High Bandwidth

Individualized Wireless Network

(H133S020043) .......................................... 3-75

Development of a Portable Reading

Device for the Blind (H133S020071) ......... 3-77

Development of a Prototype IllustrationBased Computer Textbook for LD/LEP

Students (H133S020101) ............................ 4-49

Development of an Authoring Tool to

Allow Teachers to Create Audio- Tactile

Materials for Blind or Visually Impaired

Students (H133S020147) ............................ 3-78

Development of CD-ROM-Based Cued

Speech Instructional Materials

(H133S020048) .......................................... 3-74

Development of the Remote Access

Screen Reader Architecture Math System

(RA SRAMS) (H133S020108)................... 3-86

Diagnostica K-12: A School-Centered

Collaborative Framework for Mental

Health Monitoring (H133S020032) ............ 3-79

Emergency Preparedness Training

Software with Universal Access

(H133S020076) .......................................... 3-70

An Innovative Dialysis Regeneration

Cartridge for Portable Hemodialysis

(H133S020011)......................................... 2-102

Integrating TTYs into PDAs

(H133S020049) .......................................... 3-73

Integration of Fingerprint Technology with

Online Employment Screening Software to

Create a Product that is Operated by

Persons with Disabilities in Retail Outlets

(H133S020056) .......................................... 1-31

Internet-Based Beginning Sign Language

Course for Hearing Adult Learners

(H133S020051) .......................................... 3-85

Internet-Based System for Transdisciplinary

Assessments of Infants and Toddlers

(H133S020118)........................................... 4-46

More Accurate Voice Control Systems for

the Disabled Using Improved Speech

Recognition (H133S020107) ...................... 3-76

Multi-user, Interactive Online Computer

Game to Improve School-to- Work

Transition Outcomes (H133S020007)......... 1-32

Nemeth Math to LATEX Backtranslator

System (H133S020130) .............................. 3-83

The Next Generation of Audio-Based

Assistive Technology: An Instantaneous

Customizable Audio Pegging System

(H133S020027) .......................................... 3-81

Personal Digital Memories for Individuals

with Memory and Cognitive Disabilities

(H133S020030) .......................................... 3-65

A Photo-Real Interactive Virtual Teacher

(H133S020009) .......................................... 4-45

Pocket Accessible Communication Enabler

(Pocket ACE): Providing Access to Palmtop

Computer Wireless Communication

Technologies for Individuals with Mental

Retardation (H133S020010) ....................... 3-67

Pocket Money Coach: A Portable Money

Management System to Facilitate

Community Access for Individuals with

Mental Retardation (H133S020013) ........... 3-66

Practical Force Feedback System for Upper

Limb Prosthesis Users (H133S020006) ...... 3-84

A Real-Time Spatial Environment

Navigation and Description System for the

Visually Impaired (H133S020003) ............. 3-87

SafetyNet: Supported Independence and

Safety for People with Cognitive

Disabilities (H133S020149) ........................ 3-68

Scenario-Based e-Learning for Behavioral

Parent Training (H133S020141) ................. 4-47

SignSync: Software Tools for

Synchronizing Sign Language Access to

Digital Multimedia (H133S020104)............ 3-71

Simplifying Automated Braille Music

Production: Integrating the GOODFEEL

Braille Music Translator with Mainstream

Software (H133S020081) ........................... 3-82

VCAT On-Demand Transcription Services

for Individuals Who Are Deaf or Hard of

Hearing (H133S020155)............................. 3-69

Wearable Computing System to Promote

Total Knee Arthroplasties (TKA) Recovery

(H133S020020) .......................................... 3-72

Web-Based Telerehabilitation for Home

Assessment and Monitoring

(H133S020046) ........................................ 2-101
E- 13 Projects by Program Type

Small Business Innovative Research (SBIR

Phase II)

Development of an Audio/Tactile

Accommodation for Delivery of

Standardized Math Tests to Students Who

Are Blind or Visually Impaired

(ED-01-PO-3667 (3-4)) .............................. 3-92

Development of an Audio/Tactile Atlas of

the World for Use by Individuals Who Are

Blind or Visually Impaired

(ED-01-CO-0125) ....................................... 3-91

Fair and Appropriate Community

Employment (FACE): A Management

Information System (MIS) for Evaluating the

Impact of Employment Programs on Persons

with Disabilities (SBIR 01-09) .................... 1-34

Gesture Recognition System for Personal

Computing Applications

(ED- 01-CO-0124)...................................... 3-89

A Low-Cost, High-Performance Physical

Activity Monitor (PAM)

(ED-01- CO-0123)...................................... 3-95

NutraNet: An Internet-Based, Self-Directed

Multimedia Software System for Nutritional

Education, Planning, and Implementation for

Individuals with Mental Retardation

(ED-01-CO-0126) ....................................... 4-51

Omnidirectional Wheelchair to Greatly

Increase Mobility in Vocational

Rehabilitation and Independent Living Daily

Activities (ED-01- CO-0310)...................... 3-94

Online Instruction Tools for Teaching

Mathematical Problem Solving to Learning

Disabled Students (ED-02-R-0012 (3-5)) ... 3-93

Pocket Compass: A Palmtop ComputerBased Intelligent Aid for Individuals with

Mental Retardation to Increase

Independence and Self- Determination in

Decision Making (ED-01-PO-3664 (5-2)) .. 4-52

Pocket Voyager: Making Palmtop

Computers Accessible to Individuals with

Mental Retardation

(ED-01-PO-3665 (5-1)) .............................. 4-53

QwikClick: An Intelligent Scanning

Keyboard That Maximizes the Capability of

Single-Switch Users (ED-01-CO-0122) ..... 3-88

Role Models for Youth with Disabilities:

Career Exploration for Youth in Transition

(ED-01-CO-0127) ....................................... 4-50

TalkTiles: A Multi-Sensory Language

Development Tool and Communication Aid

(ED-02-R-0012 (3-6)) ................................. 3-90

Virtual Interview Exercises for Workplace

Success (VIEWS) (ED-01-Q- 0003 (3-7)) .. 1-33

State Technology Assistance Projects

Alabama Statewide Technology Access and

Response Project (STAR) System for

Alabamians with Disabilities

(H224A30009) ............................................ 9-20

American Samoa Assistive Technology

Service (ASATS) Project (H224A30014) ... 9-22

Arizona Technology Access Program

(AzTAP) (H224A40002) ............................ 9-23

Arkansas Increasing Capabilities Access

Network (ICAN) (H224A90020) ............... 9-24

Assistive Technologies of Alaska

(H224A990001) .......................................... 9-21

Assistive Technology for Kansans Project

(H224A30013) ............................................ 9-38

Assistive Technology of Ohio (AT OHIO)

(H224A40001) ............................................ 9-58

Assistive Technology Resource Centers of

Hawaii (ATRC) (H224A10023) ................. 9-33

ATTAIN Inc. (Assistive Technology

Through Action in Indiana, Incorporated)

(H224A00027) ............................................ 9-36

California Assistive Technology System

(CATS) (H224A30008) .............................. 9-25

Colorado Assistive Technology Project

(CATP) (H224A40014) .............................. 9-26

Commonwealth of the Northern Mariana

Islands (CNMI) Assistive Technology

Project: System of Technology-Related

Assistance for Individuals with Disabilities

(STRAID) (H224A40007) ......................... 9-57

Connecticut Assistive Technology Project

(H224A20013) ............................................ 9-27

Delaware Assistive Technology Initiative

(DATI) (H224A10005) ............................... 9-28

Florida Alliance for Assistive Service and

Technology (FAAST), Inc.

(H224A000001) .......................................... 9-30
E-14 Projects by Program Type

Georgia Tools for Life (H224A10001) ....... 9-31

Guam System for Assistive Technology

(GSAT) (H224A40003) .............................. 9-32

Idaho Assistive Technology Project

(H224A20017) ............................................ 9-34

Illinois Assistive Technology Project (IATP)

(H224A90038) ............................................ 9-35

Iowa Program for Assistive Technology

(IPAT) (H224A00028) ................................ 9-37

Kentucky Assistive Technology Service

(KATS) Network (H224A90002) ............... 9-39

Louisiana Assistive Technology Access

Network (LATAN) (H224A10028) ............ 9-40

Maine Consumer Information and

Technology Training Exchange (Maine

CITE) (H224A90047) ................................ 9-41

Maryland Technology Assistance Program

(MD TAP) (H224A90019) ......................... 9-42

Massachusetts Assistive Technology

Partnership (H224A00036) ......................... 9-43

Michigan’s Assistive Technology Project

(H224A50009) ............................................ 9-44

Minnesota System of Technology to

Achieve Results (STAR) Program

(H224A90041) ............................................ 9-45

Mississippi Project START (Success

Through Assistive/Rehabilitative

Technology) (H224A00032)....................... 9-46

Missouri Assistive Technology Project

(H224A30015) ............................................ 9-47

MonTECH (H224A10002) ........................ 9-48

Nebraska Assistive Technology Partnership

(H224A90040) ............................................ 9-49

Nevada Assistive Technology Collaborative

(H224A00037) ............................................ 9-50

New Hampshire Technology Partnership

Project (H224A10015)................................ 9-51

New Jersey Assistive Technology

Advocacy Center (ATAC) (H224A20007) . 9-52

New Mexico Technology Assistance

Program (NMTAP) (H224A00017)............ 9-53

New York State Technology-Related

Assistance of Individuals with Disabilities

(TRAID) Project (H224A00041)................ 9-54

North Carolina Assistive Technology

Project (H224A00010)................................ 9-55

North Dakota Interagency Program for

Assistive Technology (IPAT)

(H224A30003) ............................................ 9-56

Oklahoma ABLE Tech (H224A50007)...... 9-59

Oregon Technology Access for Life Needs

(TALN) (H224A50002) ............................. 9-60

Pennsylvania’s Initiative on Assistive

Technology (PIAT) (H224A20006) ............ 9-61

Puerto Rico Assistive Technology Project

(H224A70001) ............................................ 9-62

Rhode Island Assistive Technology Access

Partnership (ATAP) (H224A30012) ........... 9-63

South Carolina Assistive Technology

Program (SCATP) (H224A60001) ............. 9-64

South Dakota Assistive Technology Project

(DakotaLink) (H224A20019) ..................... 9-65

Tennessee Technology Access Project

(TTAP) (H224A010002) ............................ 9-66

Texas Technology Access Project

(H224A20012) ............................................ 9-67

U.S. Virgin Islands Technology-Related

Assistance for Individuals with Disabilities

(TRAID) (H224A50005)............................ 9-68

University Legal Services AT Program for

the District of Columbia (H224A30001) ..... 9-29

Utah Assistive Technology Program

(UATP) (H224A90051) .............................. 9-69

Vermont Assistive Technology Project

(H224A00023) ............................................ 9-70

Virginia Assistive Technology System

(VATS) (H224A00009) .............................. 9-71

Washington Assistive Technology Alliance

(WATA) (H224A30006) ............................. 9-72

West Virginia Assistive Technology System

(WVATS) (H224A20011) .......................... 9- 73

WisTech (H224A00013) ............................. 9-74

Wyoming’s New Options in Technology

(WYNOT) (H224A60002) ......................... 9-75

Utilization Projects

ABLEDATA Database Program

(ED-02-000128).......................................... 6-19

National Rehabilitation Information Center

(NARIC) (ED-02-CO-002) ........................ 6-18