NIDRR

Program

Directory

Produced by the National Rehabilitation

Information Center

A project funded by The National Institute on Disability and

Rehabilitation Research, project number ED-08-CO-0095.

National Institute on Disability and Rehabilitation Research

Program Directory 2009

Produced by the

National Rehabilitation Information Center

Landover, MD

Mark X. Odum

Director

Jessica H. Chaiken

Media and Public Education Manager

Catherine E. Graves

Media Specialist
The full text of this public domain publication is available at the NARIC’s home page at

www.naric.com and in alternate formats upon request. For more information, please contact us at:

NARIC

8201 Corporate Drive, Suite 600

Landover, MD 20785

800/346-2742 or 301/459-5900 (Voice)

or 301/459-5984 (TTY).
Contents

Introduction .....................................................................................................i

Research and Development:

Employment....................................................................................................1

Health and Function........................................................................................2

Technology for Access and Function .............................................................3

Participation and Community Living .............................................................4

Disability Demographics ................................................................................5

Knowledge Translation

Knowledge Translation...................................................................................6

ADA Technical Assistance .............................................................................7

Capacity Building

Capacity Building for Rehabilitation Research Training ...............................8

Indices

Subject ........................................................................................................... A

Grantees ......................................................................................................... B

Project by State .............................................................................................. C

Principal Investigators ................................................................................... D

Projects by Program Type.............................................................................. E

Model System and Collaborative Projects..................................................... F

Introduction 1

Introduction

The mission of NIDRR is to generate new knowledge and promote its effective use to improve the

abilities of people with disabilities to perform activities of their choice in the community, and also to

expand society’s capacity to provide full opportunities and accommodations for its citizens with

disabilities. NIDRR conducts comprehensive and coordinated programs of research and related activities to assist in the achievement of the full inclusion, social integration, employment, and independent

living of people with disabilities. This edition of the NIDRR Program Directory lists all projects

funded by NIDRR during the 2009 fiscal year.

The contextual paradigm of disability and rehabilitation research, originally described in NIDRR’s Long

Range Plan, 1999-2003, continues to frame the NIDRR research agenda. This paradigm overcomes the

limitations imposed by a medical model of disability. This paradigm of disability maintains that “disability is a

product of the interaction between characteristics of the individual (e.g., conditions or impairments, functional status, or personal and social qualities) and the characteristics of the natural, built, cultural, and social

environments.” (NIDRR Long-Range Plan 1999-2003.)

NIDRR’s Research Program

Under the Long Range Plan 2005-2009, NIDRR-funded research activities fall within three strategic

arenas: Research and Development, Capacity Building, and Knowledge Translation. Most NIDRR

grantees are universities or organizations of rehabilitation or related services. NIDRR’s largest funding

programs are the Rehabilitation Research and Training Centers (RRTCs), the Model Systems, and

Rehabilitation Engineering Research Centers (RERCs). NIDRR also makes awards through other

program mechanisms, including ADA Technical Assistance Projects, Advanced Rehabilitation Research Training Projects, Disability and Rehabilitation Research Projects, Mary E. Switzer Research

Fellowships, NIDRR Contracts, NIDRR Scholars, and Small Business Innovative Research. Program

descriptions are provided below.

ADA Technical Assistance Projects

NIDRR funds a network of Disability and Business Technical Assistance Centers (DBTACs) to

provide information, training, and technical assistance related to the American with Disability Act

(ADA) to businesses, agencies, and the public. Presently, ten regional DBTACs and one Coordination,

Outreach, and Research Center (CORC) are funded under this program.

Advanced Rehabilitation Research Training Projects

The Advanced Rehabilitation Research Training (ARRT) Program provides research training and

experience at an advanced level to individuals with doctorates, or similar advanced degrees, who have

clinical or other relevant experience. ARRT projects train rehabilitation researchers, including researchers with disabilities, with particular attention to research areas that support the implementation and

objectives of the Rehabilitation Act of 1973, as amended (Act), and that improve the effectiveness of

services authorized under the Act.
2 Introduction

Grants are made to institutions to recruit qualified persons, and to provide a training program that

includes didactic and classroom instruction, is multidisciplinary, emphasizes scientific research methodology, and may involve collaboration among institutions

Disability and Rehabilitation Research Projects

The Disability and Rehabilitation Research Projects (DRRP) program funds projects with special

emphasis on research, demonstration, training, dissemination, utilization, and technical assistance.

Projects may include combinations of these activities. True to the mission of NIDRR, these projects

may develop methods, procedures, and rehabilitation technology to assist in achieving the full inclusion and integration into society, employment, independent living, family support, and economic and

social self-sufficiency of individuals with disabilities, especially individuals with the most significant

disabilities, or to improve the effectiveness of services authorized under the Rehabilitation Act.

Mary E. Switzer Research Fellowships

Research Fellowships, named for the late Mary E. Switzer, give individual researchers the opportunity

to develop new ideas and gain research experience. There are two levels of fellowships: Distinguished

Fellowships and Merit Fellowships. Distinguished Fellowships go to individuals who have seven or

more years of research experience in subject areas, methods, or techniques relevant to rehabilitation

research and must have a doctorate, other terminal degree, or comparable academic qualifications.

Merit Fellowships are given to individuals who have either advanced professional training or independent study experience in an area that is directly pertinent to disability and rehabilitation but who do not

meet the qualifications for Distinguished, usually because they are in earlier stages of their careers.

Fellows work for one year on an independent research project of their design.

Model Systems

NIDRR administers programs that have become world-renowned model systems of care for persons

with spinal cord injuries, burns, and traumatic brain injuries. The Model Systems establish innovative

projects for the delivery, demonstration, and evaluation of comprehensive medical, vocational, and

other rehabilitation services. The work of the Model Systems begins at the point of injury and ends

with successful re-entry into full community life. These projects collect and contribute data on patient

characteristics, diagnoses, causes of injury, interventions, outcomes, and costs to a uniform national

database; participate in collaborative research with other Model System centers; and coordinate research efforts with other related grant recipients. In 2006, NIDRR funded a coordinating knowledge

translation center for all three Model System types.

NIDRR Scholars

The NIDRR Scholars Program is designed to provide internship opportunities in disability and rehabilitation research for undergraduate students with disabilities. Each year, NIDRR provides funding for

this program to projects and centers. The intent of the program is to enable students to gain practical

experience in ongoing research, thereby preparing them for careers in disability and rehabilitation

research. The duration of the internship is one semester and the students are required to work 20 hours

per week.
Introduction 3

NIDRR Contracts

Through its contracts, NIDRR seeks improved methods, systems, products, and practices to add to its

work. The contracts are for specific activities related to management, research, and information dissemination.

Rehabilitation Engineering Research Centers

Rehabilitation Engineering Research Centers (RERCs) conduct programs of advanced research of an

engineering or technical nature designed to apply advanced technology, scientific achievement, and

psychological and social knowledge to solve rehabilitation problems and remove environmental

barriers. Each center is affiliated with one or more institutions of higher education or nonprofit organizations. The RERCs’ work in a rehabilitation setting provides an environment for cooperative research

and the transfer of rehabilitation technologies into rehabilitation practice. Involved at both the individual and systems levels, RERCs seek to find and evaluate the newest technologies, products, and

methods that ultimately can benefit the independence of persons with disabilities and the universal

design of environments for all people of all ages. The centers also exchange technical and engineering

information worldwide and improve the distribution of technological devices and equipment to individuals who need them.

Rehabilitation Research and Training Centers

NIDRR’s Rehabilitation Research and Training Centers (RRTCs) conduct coordinated and integrated

advanced programs of research targeted toward the production of new knowledge, which may improve rehabilitation methodology and service delivery systems, alleviate or stabilize disabling conditions, or promote maximum social and economic independence for persons with disabilities. Operated

in collaboration with institutions of higher education or providers of rehabilitation or other appropriate

services, RRTCs serve as centers of national excellence in rehabilitation research. Also, they are

national or regional resources for research information for individuals with disabilities and the parents,

family members, guardians, advocates, or authorized representatives of the individuals. These centers

also conduct related training programs, including graduate, pre-service and in-service training. The

centers also disseminate and promote the utilization of research findings.

Small Business Innovation Research

Small Business Innovation Research (SBIR) grants help support the production of new assistive and rehabilitation technology. This two-phase program takes a product from development to market readiness.

NARIC and the NIDRR Program Directory

The Program Directory is compiled by the National Rehabilitation Information Center (NARIC). NARIC

functions as a specialized library, providing the public with information on and referral services to help

locate disability and rehabilitation research and services. Since 1977, NARIC has been the primary

source of rehabilitation and disability information generated by NIDRR funds, with special priority

services to NIDRR staff and NIDRR-funded project staff.
4 Introduction

NARIC also produces REHABDATA, an index of disability and rehabilitation literature produced by

NIDRR grantees as well as commercial publishers. Grantees submit copies of NIDRR-supported

research products to NARIC and they are added to the reference collection and REHABDATA database. Information about holdings is available online at http://www.naric.com.

Neither NARIC nor NIDRR assumes liability for the Directory’s contents or the use thereof. NARIC

does not evaluate or certify the programs or products of the organizations listed in the Directory.

This Directory is not intended for use as a fiscal document to show how NIDRR funds are allocated;

its purpose is to display the range of programs that NIDRR supports. This listing is current as of

December 10, 2009. This directory may include projects that have passed the indicated extension date.

NARIC operates under U.S. Department of Education contract ED-08-CO-0095.
Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Disability and Rehabilitation Research Projects .................................................................................. 14

Field Initiated Projects (FIPs) .............................................................................................................. 21

Employment

NIDRR’s employment research focuses on the lifelong challenges to and

opportunities presented by transitions in employment experienced by people with

disabilities. Employment research addresses methods to integrate the unique needs of

employers and disability populations to improve employment outcomes across the

life span. NIDRR’s research agenda in the area of employment is designed to

strengthen the scientific basis of disability and rehabilitation-related research and

practice by increasing the availability of validated theories, measures and methods to:

(1) improve measurement, data sources, and estimates; and (2) enhance

identification, evaluation, and prediction of the factors that facilitate successful labor

force participation and work-related transitions across the life span. This research

agenda is also designed to strengthen the scientific basis of disability-related

employment policy, practice, and research by providing valid and reliable

information and analyses designed to: (1) improve understanding of employment

trends; individual labor force participation; and school-to-work transitions; and (2)

enhance knowledge of the broader societal developments that affect employment

opportunities and outcomes across the life span.

NIDRR Program Directory FY 2009 - Employment Outcomes 1-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center for Vocational

Rehabilitation Research

University of Massachusetts Boston

Institute for Community Inclusion

100 Morrissey Boulevard

Boston, MA 02125-3393

Susan.Foley@umb.edu

www.communityinclusion.org/project.php?project_id=50

Principal Investigator: Susan Foley, PhD

Public Contact: 617/287-4317

Project Number: H133B070001

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 07 $649,999; FY 08 $649,999; FY 09 $650,000

Abstract: The RRTC for Vocational Rehabilitation Research provides a comprehensive description of

the vocational rehabilitation (VR) program, collects best practices, and addresses the need for information that will assist administrators, researchers, and advocates to make data driven policy and practice

decisions. The RRTC (1) conducts an exhaustive, systematic research literature search in Year 1,

modeled after the Campbell Collaboration reviews, to provide a comprehensive platform for future

research activities of the RRTC and for other researchers and policy-makers; (2) collects descriptive

data from a wide range of sources including existing administrative datasets and official documents,

and launches the RRTC survey of state agencies for vocational rehabilitation, mental retardation/

developmental disability, mental health, and welfare, and community rehabilitation providers in Years 2

and 3 to develop state-by-state profiles of employment services and the context of VR service delivery;

(3) interviews VR directors of all 80 VR agencies in Years 2 and 3 to collect descriptive information

about key characteristics related to operational and programmatic decisions, policies, and practices; (4)

uses the Delphi Method in Years 3 through 5 to identify, evaluate, and describe best practices in the

implementation of (a) Order of Selection policies and the prioritization of individuals with the most

significant disabilities for VR services, (b) employment services for individuals with developmental

disabilities, and (c) employment services for individuals with mental illnesses; (5) institutes a training

and technical assistance agenda that uses Communities of Practice mechanisms to create interactive

participant-driven opportunities for translation, information sharing, and policy development; and (6)

widely disseminates products, curricula, and knowledge throughout the vocational rehabilitation

system, employment services system, and to a wide array of disability and advocacy organizations.

The RRTC develops a knowledgebase on VR that informs policy and practice at the federal, state, and

local levels, encourages data-based decision-making, results in the development of a research base that

future investigators can use for analyzing the consequences and outcomes of variations in State VR

agencies’ internal arrangements and operations, documents best practices in detail, identifies their key
1-4 NIDRR Program Directory FY 2009 - Employment Outcomes

features, and investigates their transferability into other contexts. The RRTC is a partnership of the

Institute for Community Inclusion at the University of Massachusetts Boston, the Center for the Study

and Advancement of Disability Policy, and InfoUse, a woman-owned business.
NIDRR Program Directory FY 2009 - Employment Outcomes 1-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Improved Employment Outcomes for Individuals with Psychiatric

Disabilities

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

mfarkas@bu.edu; erogers@bu.edu

Principal Investigator: Marianne Farkas, ScD; E. Sally Rogers, ScD

Public Contact: Marianne Farkas, ScD 617/353-3549; Fax: 617/353-7700

Project Number: H133B090014

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 09 $849,535

Abstract: This project develops and tests innovative interventions, identifies barriers to and facilitators

of effective partnerships among providers of employment services, and develops and tests adaptations

of evidence-based employment interventions for individuals with psychiatric disabilities from traditionally underserved groups. Additionally, this project incorporates research findings into practice and

policy by developing, evaluating, and implementing strategies to increase utilization of research findings; and conducts training, technical assistance, and dissemination activities (TDTA) with the same

purpose. TDTA projects are organized into programmatic areas which together focus on the development and implementation of practices and services to improve employment outcomes. Using the

knowledge transfer framework, TDTA projects produce usable, new technologies for improving

employment outcomes.
1-6 NIDRR Program Directory FY 2009 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Learning and Working During the Transition to Adulthood

University of Massachusetts Medical School

CMHSR/Department of Psychiatry

UMMS 55 Lake Avenue

Worcester, MA 01655

maryann.davis@umassmed.edu

Principal Investigator: Maryann Davis, PhD

Public Contact: 508/856-8718; Fax: 508/856-8700

Project Number: H133B090018

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 09 $800,398

Abstract: This project focuses on school-to work transitions and develops an integrated research

program examining this developmental stage for individuals with severe psychiatric disabilities. The

transition to adulthood is a critical life stage when the learning that occurs, both in school and in the

larger world, lays an important foundation for individuals’ future work life. Severe psychiatric disability issues can disrupt the school-to work pathway and contribute to school dropout, psychiatric hospitalization, homelessness, and jail. The Learning and Working During the Transition to Adulthood

Research and Training Center provides national leadership to researchers, policymakers, practitioners,

and consumers and their families on the school to work transition of transition-age youth and young

adults with serious mental health conditions. The Center develops and translates knowledge from stateof-the-art rigorous research on education and work experiences for 14-30 year olds. The research is

informed by consumer and family input and is carried out in real world settings. This project contributes to new knowledge about interventions for this population who are from disadvantaged backgrounds, and improves coordination between child and adult mental health services. The translation of

this knowledge speeds capacity building for service providers and the movement of findings into

practice and policy.
NIDRR Program Directory FY 2009 - Employment Outcomes 1-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Montana

Rehabilitation Research and Training Center on Disability in Rural

Communities

University of Montana

The University of Montana Rural Institute:

A Center for Excellence in Disability Research, Education and Services

52 Corbin Hall

Missoula, MT 59812-7056

rural@ruralinstitute.umt.edu

rtc.ruralinstitute.umt.edu

Principal Investigator: Tom Seekins, PhD 406/243-2654

Public Contact: Diana Spas 888/268-2743 (V); 406/243-5467 (V); 406/243-4200 (TTY); Fax: 406/

243-2349

Project Number: H133B030501

Start Date: December 01, 2002

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $600,000; FY 04 $600,000; FY 05 $600,000; FY 06 $600,000; FY 07

$600,000; FY 08 (No-cost extension through 11/30/2008)

Abstract: The research conducted by this project improves the employment status of people with

disabilities in the rural US, enhances their ability to live independently, and advances the science of

rural disability studies. Four core areas comprise 11 research projects in rural employment and economic development, rural health and disability, rural community transportation and independent living,

and rural policy foundations. Projects include: (1) develop scientific methods to measure how rural

environments influence an individual’s community participation; (2) collaborate with very small rural

businesses to employ people with disabilities; (3) improve rural transportation options; and (4) create

programs to prevent or improve secondary conditions. Other projects explore ways for new partners,

including faith-based organizations, to be involved in improving rural services. A training program

disseminates research findings, trains students, and sparks the creative engagement of policymakers

and social advocates. The innovative STATE (Same-Time Availability to Everyone) policy requires

that the project provide standard print publications to the general public only when at least two alternative formats are also available to individuals with disabilities.
1-8 NIDRR Program Directory FY 2009 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Montana

Rehabilitation Research and Training Center on Disability in Rural

Communities

University of Montana

The University of Montana Rural Institute:

A Center for Excellence in Disability Research, Education and Services

52 Corbin Hall

Missoula, MT 59812-7056

rural@ruralinstitute.umt.edu

rtc.ruralinstitute.umt.edu

Principal Investigator: Tom Seekins, PhD 406/243-2654

Public Contact: Nancy Arnold 888/268-2743 (V); 406/243-5467 (V); 406/243-4200 (TTY); Fax:

406/243-2349

Project Number: H133B080023

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 08 $850,000; FY 09 $850,000

Abstract: Nearly 20 percent of the 56 million Americans living in rural areas live with a disability.

Compared to their urban counterparts, rural Americans with disabilities experience higher unemployment and poorer health. The RTC: Rural at The University of Montana conducts research that advances a science of rural disability and rehabilitation, improves the health of rural Americans with

disabilities, and increases their opportunities for employment and community integration. The research

and training program provides contextually appropriate, evidence-based solutions that rely on resources available in most rural communities, while respecting their diversity and values. The project:

(1) conducts detailed statistical analyses of state Vocational Rehabilitation (VR) data to identify promising, evidence-based rural service practices; (2) develops and evaluates telecommunications protocol for

providing rural VR services; (3) conducts a longitudinal study to determine why rural VR clients might

exit services prematurely, and to evaluate retention strategies; (4) evaluates rural health promotion

strategies that could lead to improved employment outcomes; (5) conducts a randomized controlled

trial to evaluate ways to improve rural consumers’ use of health care services; (6) conducts a randomized controlled trial to evaluate a mental health peer support model for rural individuals with mobility

or sensory impairments; and (7) identifies strategies to improve rural transportation. The knowledge

translation program disseminates research findings and sparks the use of evidence-based rural practices

by policy makers, advocates, service providers, and persons with disabilities. The project web site,

which is a central component of the dissemination program, includes the first rural disability “wiki,”

building a rural disability knowledge base. The project includes three focused training initiatives: (1)

promoting economic development in rural southwest Texas; (2) facilitating linkages between Utah

Small Business Development Centers and VR services; and (3) implementing the Living Well with a

Disability health promotion program in rural South Carolina. The project also includes an innovative,

web-based state-of-the-science conference on rural disability and rehabilitation.
NIDRR Program Directory FY 2009 - Employment Outcomes 1-9

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Employment Policy

and Individuals with Disabilities

Cornell University

Employment and Disability Institute

 School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853-3901

smb23@cornell.edu

www.ilr.cornell.edu/edi/p-eprrtc.cfm

Principal Investigator: Susanne Bruyère, PhD; Richard Burkhauser, PhD; David Stapleton, PhD

Public Contact: Susanne Bruyère, PhD 607/255-9536 (V); 607/255-2891 (TTY); Fax: 607/255-2763

Project Number: H133B040013

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 04 $700,000; FY 05 $700,000; FY 06 $700,000; FY 07 $700,000; FY 08

$700,000

Abstract: The ultimate goal of the Employment Policy Rehabilitation Research and Training Center

(EP-RRTC) is to increase the employment and economic self-sufficiency of people with disabilities

and improve the quality of their lives. EP-RRTC’s immediate purpose is to contribute to the success of

the transition from caretaker policies to economic self-sufficiency policies. The immediate target

population consists of people who influence disability policy: people with disabilities; federal, state,

and local policymakers, administrators, and regulators; advocates; service providers; researchers and

policy analysts; the media; employers, unions, insurers; and the general public. The ultimate target

population is people with disabilities. Specific goals and objectives are: completion of new research

activities that will generate knowledge about the effects of past disability policy and other factors on

economic self-sufficiency, the impact of current and future initiatives designed to promote economic

self-sufficiency, and/or the likely success of new policy options; completion of 20 publishable papers

and companion policy briefs; training of consumers via 12 or more Washington-based Disability Policy

Forums; training of 5 graduate students; participation in the 2008 conference of the Interagency Subcommittee on Employment; organization and delivery of disability policy research sessions at the

Association of Public Policy Analysis and Management (APPAM) fall meetings, and technical assistance to consumers on policy research and evaluation methods and data. Project activities include

writing briefs about the evaluations of promising policy innovations, consulting with a wide array of

constituents to obtain feedback about an array of policy options that merit further consideration, and

collaborating with SSA staff to develop state-level series on employment outcomes for Social Security

Disability Insurance and Supplemental Security Income beneficiaries. Dissemination activities include:

organization and participation in five disability policy research sessions at the 2007 fall conference of

the APPAM and a reception for disability researchers; presentations in the 2008 Interagency Subcom-
1-10 NIDRR Program Directory FY 2009 - Employment Outcomes

mittee on Employment conference on interagency employment research; an accessible website for the

dissemination of our outputs (e.g., policy briefs, reports, and materials); presentations and dissemination of outputs at conferences; and publication of the research papers in peer-reviewed journals.
NIDRR Program Directory FY 2009 - Employment Outcomes 1-11

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Employment Service

Systems

Hunter College of CUNY

Research Foundation of CUNY

695 Park Avenue

New York, NY 10021

joneill@hunter.cuny.edu

www.essrtc.org

Principal Investigator: John O’Neill, PhD

Public Contact: 212/772-5188; Fax: 212/650-3198

Project Number: H133B040014

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 04 $699,981; FY 05 $699,973; FY 06 $699,990; FY 07 $849,982; FY 08

$699,975; FY 09 (No-cost extension through 9/30/10)

Abstract: This Employment Service Systems Research and Training Center develops, enhances, and

utilizes partnerships to improve the quality of employment services, opportunities, and outcomes for

people with disabilities. Five research projects have been designed to meet this goal and examine

partnerships across public agencies, between not-for-profit and public agencies, and between rehabilitation agencies and businesses. The Consortia for Employment Success (CES) creates and evaluates

fully integrated disability service provider networks in three local communities. The CES increases

access for people with disabilities to both effective, comprehensive placement services, and a wellmanaged and centralized employer network that will increase employment and career advancement

opportunities for persons with disabilities. The Workplace Socialization Model (WPS) supplements the

CES Model by focusing on job enhancement and retention. The WPS aims to extend the job tenure of

employees with disabilities and other positive work outcomes including the employee’s job satisfaction, organizational commitment, and level of work culture competency, as well as the employer’s

satisfaction with the employee’s job performance. Identification of “Good Practices” within Vocational

Rehabilitation (VR) is designed to identify a variety of good practices currently being used in the StateFederal VR system across the US that facilitate consumer access to services and enhance employment

outcomes. Designing and Testing Comprehensive Employment Practice and Policy Initiatives within a

Vocational Rehabilitation State Agency develops and tests a model that leads to enhanced employment

outcomes. The model includes the “human capital” characteristics of persons with disabilities as well

as what VR delivery systems add to these human capital factors to improve outcomes. A study of

collaboration between Workforce Investment Act (WIA) partners in One-Stops collects data within 16

Iowa regions and correlates different levels of collaboration with customer satisfaction and employment outcomes.
1-12 NIDRR Program Directory FY 2009 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Ohio

Rehabilitation Research and Training Center on Substance Abuse,

Disability, and Employment

Wright State University

School of Medicine

Substance Abuse Resources and Disability Issues (SARDI)

3171 Research Boulevard, Room 255

Kettering, OH 45420

mary.mcaweeney@wright.edu

www.med.wright.edu/citar/sardi/rrtc_about.html

Principal Investigator: Dennis C. Moore, EdD

Public Contact: Mary McAweeney 937/775-1484 (V/TTY); Fax: 937/775-1495

Project Number: H133B040012

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 04 $699,998; FY 05 $699,983; FY 06 $699,981; FY 07 $699,984; FY 08

$699,989; FY 09 (No-cost extension through 11/30/2010)

Abstract: This RRTC builds on previous findings to positively impact persons with disabilities who

also experience substance use disorders, as well as the service providers upon whom they depend. The

highly integrated program of research addresses the following goals and objectives: (1) Promote

widespread use of substance use disorder screening among persons with disabilities who utilize disability-related employment services. This is accomplished by developing and validating a new substance

abuse screener called the “SASSI-VR”. Following two stages of development and validation, the

SASSI-VR is evaluated in three vocational rehabilitation (VR) programs on a statewide basis. (2)

Conduct a randomized clinical trial of a model of supported employment, Individualized Placement

and Support (IPS), to test its efficacy among persons with traumatic brain injury or other severe disabilities that also have a substance use disorder. The two trial sites are affiliated with rehabilitation

programs in the Wright State and Ohio State medical schools. Utilization of the IPS model with the

study populations holds tremendous potential for impacting services delivery for consumers who

experience very low rates of employment. (3) Research policy and practices relative to their impact on

VR services for persons with a disability and coexisting substance abuse. Serving as a critical complement to the first project, the roles of policies, statutes, guidelines, and VR service delivery practices

will be investigated within the larger community of public agencies. (4) Investigate factors that specifically contribute to unsuccessful case closure among consumers of VR services. This component

studies recent unsuccessful closures and their VR counselors, and the study has particular sensitivity to

the role of “hidden” substance abuse among unsuccessful closures.
NIDRR Program Directory FY 2009 - Employment Outcomes 1-13

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Virginia

Rehabilitation Research and Training Center on Workplace Supports

and Job Retention

Virginia Commonwealth University

1314 West Main Street, Box 842011

Richmond, VA 23284-2011

vbrooke@vcu.edu

www.worksupport.com

Principal Investigator: Paul Wehman, PhD

Public Contact: Valerie Brooke, Director of Training 804/828-1851 (V); 804/828-2494 (TTY); Fax:

804/828-2193

Project Number: H133B040011

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 04 $699,981; FY 05 $699,973; FY 06 $699,990; FY 07 $699,988; FY 08

$699,999; FY 09 (No-cost extension through 5/31/2010)

Abstract: The purpose of the RRTC on Workplace Supports and Job Retention is to study those

supports which are most effective in the workplace for assisting persons with disabilities to maintain

employment and advance their careers. Research includes two long-term prospective randomized

experimental control research projects: (1) determining the efficacy of public/private partnerships, and

(2) determining the efficacy of business mentoring and career based interventions with college students

with disabilities. The RRTC is partnered with Manpower, Inc., several community rehabilitation

programs, and the VCU Business Roundtable. Additional projects look at disability management

practices, extended employment supports, job discrimination in employment retention, benefits planning and assistance, and workplace supports. These studies are done in conjunction with Equal Employment Opportunity Commission, the Society of Human Resource Professionals, and the U.S.

Chamber of Commerce.
1-14 NIDRR Program Directory FY 2009 - Employment Outcomes

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Arkansas

Improve the Employment Outcomes for the Low Functioning Deaf

(LFD) Population

University of Arkansas

College of Education and Health Professions

26 Corporate Hill Drive

Little Rock, AR 72205

dwatson@uark.edu

Principal Investigator: Douglas Watson, PhD

Public Contact: 501/686-9691; Fax: 501/686-9698

Project Number: H133A060044

Start Date: January 01, 2007

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $450,000; FY 07 $450,000; FY 08 $450,000

Abstract: This project conducts a program of theory-driven research to improve employment outcomes for the Low Functioning Deaf (LFD) population. The goals of the project are to: (1) develop a

national profile of the state of the knowledge for services to persons who are LFD; (2) develop consensus on functional definitions of the target population using a concept mapping approach with knowledgeable providers who serve the population; (3) develop and validate a psychometrically sound tool

to assess the functional characteristics of persons identified as LFD and to be used by partner states to

develop a descriptive profile of the population; (4) replicate a systems level analysis of service delivery

options available to the target population with key state partners; (5) assess barriers exhibited by LFD

and pre-employment skills needed to enter the workforce; and (6) focus on best practices in job coaching to enhance workplace integration and job tenure. The success of the research and dissemination

efforts is insured by inclusion of five state rehabilitation partners including providers, policy makers,

and administrators from vocational rehabilitation, community service agencies, and school and community-based transition programs. The project makes use of long-established networks and collaboration

with key federally-funded partners to facilitate dissemination of research-based knowledge to the field,

leading to improvements in services for persons who are LFD.
NIDRR Program Directory FY 2009 - Employment Outcomes 1-15

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

Research and Technical Assistance Center on Vocational Rehabilitation

Program Management

University of Massachusetts Boston

The Institute for Community Inclusion

100 Morrissey Boulevard

Boston, MA 02125

ici@umb.edu

www.communityinclusion.org

Principal Investigator: William E. Kiernan, PhD 617/287-4311

Public Contact: 617/287-4300; Fax: 617/287-4352

Project Number: H133A090002

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 09 $1,500,000

Abstract: This Center uses a three-stage process to develop and test a Vocational Rehabilitation (VR)

Program Management Model. In the model development stage, project staff conduct research activities

that build on of existing management models, integrate knowledge generated from other public systems and the private sector, and review evidence indicating associations between management practices and organizational outcomes. In the second stage, model verification and transfer, staff coordinate

three research projects that emphasize the collection and evaluation of knowledge generated directly by

the VR program, translate findings from the development phase into actionable management strategies,

and finalize the VR Program Management Model. In the third stage, the management practices laboratory, the VR Program Management Model, its implementation, and validation are studied at seven

Partnering State VR Agencies. An Advisory Committee ensures the VR Program Management Model

is technically sound, relevant, and functional for the VR system. Training and technical assistance (TA)

activities are integrated into the research agenda and designed for replication and distribution by the

VR TA Network. Tools developed by the Center will promote effective and efficient VR management

practices that ultimately lead to improved organizational performance and high quality employment

outcomes for people with disabilities.
1-16 NIDRR Program Directory FY 2009 - Employment Outcomes

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Mississippi

Vocational Rehabilitation: Transition Services that Lead to Competitive

Employment Outcomes for Transition-Age Individuals with Blindness

or Other Visual Impairments

Mississippi State University

P.O. Box 6189

Mississippi State, MS 39762

lgoleman@colled.msstate.edu

www.blind.msstate.edu

Principal Investigator: Brenda Cavenaugh 662/325-3728

Public Contact: Lynda Goleman 662/325-2001 (V); 662/325-8693 (TTY); Fax: 662/325-8989

Project Number: H133A070001

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 07 $450,000; FY 08 $450,000; FY 09 $450,000

Abstract: This project conducts scientifically based research on transition services that lead to competitive employment outcomes for transition-age individuals with blindness or other visual impairments. The project includes four major research projects and a plan of dissemination. Project 1 involves conducting an integrative (systematic) literature review to identify and synthesize research on

services leading to successful employment and other postsecondary outcomes for blind youth. The

review process is considered empirical research and is approached with the scientific rigor used when

conducting primary research. Project 2 includes analysis of five national, cross-sectional, and longitudinal data sources to explore relationships between potential causes or influencing factors and positive

transition outcomes of youth who are blind or visually impaired. Specialized approaches used in

analysis of the longitudinal data sources allow opportunity for causal inferences. Project 3 uses qualitative and quantitative methods in the collection of data from a variety of sources (focus groups with

rehabilitation professionals, teachers, post-secondary support service providers, SSA representatives,

and others; interviews with consumers; VR case records). The research identifies factors that impact

the employment status of transition-age youth. Project 4 involves using knowledge gained from

Projects 1, 2, and 3 to identify and develop, demonstrate, and evaluate the effectiveness of two interventions—one targeting youth who are preparing to transition from high school to employment or

college and the other targeting youth who are preparing to transition from college to employment. In

implementing the plan of dissemination, a variety of methods help ensure that the quality, clarity, and

accessibility of products are appropriate for the target population.
NIDRR Program Directory FY 2009 - Employment Outcomes 1-17

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Demand-Side Employment Placement Models

Syracuse University

Burton Blatt Institute

900 South Crouse Avenue

Crouse-Hinds Hall 300

Syracuse, NY 13244

wmyhill@syr.edu

bbi-empdemand.syr.edu/

Principal Investigator: Peter D. Blanck, PhD, JD 315/443-9703

Public Contact: Wiliam N. Myhill, MEd, JD 315/443-1367; Fax: 315/443-9725

Project Number: H133A060033

Start Date: July 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $500,000; FY 07 $500,000; FY 08 $500,000; FY 09 $500,000

Abstract: Americans with disabilities have significantly lower levels of employment than their peers

without disabilities. Prior study of employment rates among people with disabilities generally has relied

on a “supply-side” approach, analyzing how personal characteristics predict employment and earnings.

These models have not sufficiently analyzed variables related to employer demand (and the interaction

of employer demand/supply and the environment) as predictors of employment outcomes for people

with disabilities. Thus, there is a need to systematically understand demand characteristics for qualified

workers with disabilities, particularly as work requirements change over time. This project sets out

scientifically rigorous and evidence-based methods to develop, identify, and evaluate employment

demand-side models. It translates the findings into valid and practical tools for large and small businesses in different market sectors to improve employment outcomes. It evaluates the relative efficacy of

these tools alongside supply-side research outcomes. The project is a nationwide collaboration of

economists, statisticians, and leading experts in law, public and disability policy, corporate culture,

applied life studies, technology, and education, as applied to disability employment policy and law.

Project leadership includes disability scholars from universities around the country, with combined

decades of research, training, and knowledge dissemination experience. The project builds fresh

partnerships among disability policy and law experts, the business community, researchers, and national disability organizations such as the National Organization on Disability and the National Council

on Independent Living. The project generates new knowledge to better understand market-driven

workforce trends in large and small firms and different market sectors, and to inform employment

practices to prepare individuals with disabilities for the present and future workforce. The project has a

systematic plan and logic model for knowledge translation and dissemination aimed at providing

employers best practice and practical tools to improve employment outcomes of people with disabilities.
1-18 NIDRR Program Directory FY 2009 - Employment Outcomes

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Center on Effective Delivery of Rehabilitation Technology by

Vocational Rehabilitation Agencies

Syracuse University

Burton Blatt Institute

900 South Crouse Avenue; Crouse-Hinds Hall 300

Syracuse, NY 13244

bbi.syr.edu/

Principal Investigator: Peter D. Blanck, PhD, JD 315/443-9703

Public Contact: Deepti Samant 202/296-5393; Fax: 202/296-2047

Project Number: H133A090004

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 09 $499,630

Abstract: This Center uses quantitative and qualitative research methods to identify and document

indicators of effective rehabilitation technology (RT) service delivery. Effectiveness is defined by

quality indicators incorporating variables of structure, policy, decision making processes, and costs

related to outcomes and counselor and consumer satisfaction. The Center also analyzes supports

necessary for effective RT delivery, including counselor education, assessment tools and measures,

information management, consumer education, quality assurance mechanisms, and public and private

sector relationships. Selection and analysis of “effective RT service delivery models” takes into account variances related to urban versus rural areas, different types of disabilities, and programs administered within and outside State Vocational Rehabilitation (VR) agencies. The Center’s research team

conducts in-depth evaluation of six State VR programs and six outside programs. The goal of the

Center is to develop a new validated instrument and system of measurement to improve RT service

delivery and reduce RT non-use and poor employment outcomes. The tool is accompanied by an

interactive training program for VR counselors to build knowledge of RT solutions and an improved

assessment process, including a set of exemplars, tools, and guidance that VR agencies and other

programs can use to improve RT service delivery.
NIDRR Program Directory FY 2009 - Employment Outcomes 1-19

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

SEDL’s Vocational Rehabilitation Service Models for Individuals with

Autism Spectrum Disorders

SEDL

4700 Mueller Boulevard

Austin, TX 78723

john.westbrook@sedl.org

www.autism.sedl.org

Principal Investigator: John Westbrook, PhD

Public Contact: 512/476-6861; Fax: 512/476-2286

Project Number: H133A080007

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 08 $350,000; FY 09 $350,000

Abstract: For this project, SEDL partners with the Center for Autism and Related Disabilities at the

University of Central Florida (UCF CARD) to create a knowledge translation initiative to address the

growing need for improvement in vocational rehabilitation (VR) and transition services for persons

with autism spectrum disorders (ASDs). SEDL and UCF CARD conduct a multifaceted set of research activities to identify and document VR and transitional behavior management practices that are

linked to employment successes for people with ASDs, to identify factors that are strongly predictive

of such success, to study the activities and impact of a statewide VR service provider network, and to

document examples of success among individuals with ASDs in long-term employment placements.

Research activities include conducting two major systematic reviews, implementation of a rigorous

process for identifying and validating VR best practices, a study of the university-based statewide

network of CARD centers in Florida, and case studies of individuals with ASDs and their families.

Additionally, this project develops and disseminates an array of information products to inform both

policy and practice, and to support implementation of best practices in VR settings throughout the US

with existing national VR, service provider, advocacy, and research networks. This project is guided

by a national advisory panel comprised of representatives from NIDRR-funded research initiatives

addressing ASDs, VR professionals, ASDs service providers, and people with ASDs and/or their

family members. The project outcomes include new knowledge and understanding, and allow for onthe-ground changes within the VR system, increasing employment among persons with ASDs.
1-20 NIDRR Program Directory FY 2009 - Employment Outcomes

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Virginia

Vocational Rehabilitation Service Models for Individuals with Autism

Spectrum Disorders (VCU ASC Career Links)

Virginia Commonwealth University

VCU ASD Career Links

P.O. Box 842011

Richmond, VA 23298

www.worksupport.com

Principal Investigator: Paul Wehman, PhD

Public Contact: 804/828-1852 (V); 804/828-2494 (TTY); Fax: 804/828-2521

Project Number: H133A080027

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 08 $350,000; FY 09 $350,000

Abstract: VCU ASD Career Links conducts evidence-based research on vocational rehabilitation

(VR) service models for individuals with autism spectrum disorders (ASDs). The project is based at

Virginia Commonwealth University (VCU) and is a collaborative initiative between VCU and the

Virginia Department of Rehabilitative Services (DRS). The scope of research covers four areas: (1) the

impact of intensive, community-based work experiences on the employment outcomes of youth with

ASDs; (2) the postsecondary school participation and ultimate employment of college students with

ASDs; (3) the impact of personal digital assistants (PDAs) on the employment outcomes of individuals

with ASDs; and (4) a longitudinal analysis of VR service delivery and employment outcomes among

DRS clients with ASDs. While the primary target population is persons with ASDs, there is an emphasis on youth and young adults who are unemployed, under-employed, or under-served in

postsecondary education. Additionally, this project targets persons from traditionally under-represented

populations with diverse racial and ethnic backgrounds. This project works collaboratively with four

local school districts in the Richmond area and the Faison School for Autism to enroll youth with

ASDs into the project. The project also works with colleges and universities throughout the Commonwealth of Virginia. Dissemination activities include web casts, fact sheets, evidence-based journal

articles, and a toolkit on how to enhance VR employment models for youth with ASDs.
NIDRR Program Directory FY 2009 - Employment Outcomes 1-21

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Arkansas

Beyond Hearing Aids: Training Resources to Improve the Capacity of

VR Professionals Serving Consumers who are Hard of Hearing and

Late Deafened

University of Arkansas for Medical Sciences

Department of Educational Development

4301 West Markham, # 595

Little Rock, AR 72205

seboone@uams.edu

Principal Investigator: Steven E. Boone, PhD; Alan VanBiervliet, PhD

Public Contact: 501/686-7348; Fax: 501/686-7348

Project Number: H133G090170

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 09 $199,769

Abstract: This development project produces training resources designed to meet needs expressed by

vocational rehabilitation (VR) professionals and consumers for increased knowledge and capacity to

improve services to a growing population of 30.6 million persons with hearing loss. This project

includes four steps: (1) empirically prioritize training content, (2) develop a multimedia training resource, (3) field-test its efficacy, and (4) train and disseminate the resource to a workforce of over

15,000 general and specialized counselors as well as approximately 1,100 annual graduates of over 85

rehabilitation counselor training programs. The developed materials will enhance the knowledge of

general and specialized rehabilitation counselors who serve working age consumers who are hard of

hearing or late deafened. The project collaborates with the Council of State Administrators of Vocational Rehabilitation (CSAVR) and content experts (VR providers, educators, consumers, and advocates) for the target population to produce and evaluate the needed resources.
1-22 NIDRR Program Directory FY 2009 - Employment Outcomes

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Hampshire

Cognitive Training and Supported Employment in Severe Mental

Illness

Dartmouth College

PRC, 105 Pleasant Street

Concord, NH 03301-3852

susan.r.mcgurk@dartmouth.edu

Principal Investigator: Susan McGurk, PhD

Public Contact: 603/271-5747; Fax: 603/271-5265

Project Number: H133G050230

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 05 $149,736; FY 06 $149,749; FY 07 $149,106; FY 08 (No-cost extension

through 11/30/2009)

Abstract: Impaired cognitive functioning is an important predictor of employment outcomes in persons with severe mental illness (SMI), and a common complaint in consumers participating in vocational rehabilitation, including those in supported employment. This project evaluates a new, pilot

tested and standardized intervention, the “Thinking Skills for Work”, a program designed to help

people with SMI succeed in supported employment programs, including both getting and keeping jobs.

The Thinking Skills for Work program is aimed at improving the cognitive functioning of persons with

SMI involved in supported employment, and is based on a heuristic model of the interactions between

cognition, symptoms, work performance, and vocational services. According to the model, enhanced

cognitive functions improve both work outcomes and the efficiency of vocational services (i.e., fewer

support services needed per hour of consumer work). The Thinking Skills for Work program is delivered by a specialist who educates consumers about cognitive functioning and work, involves them in a

three-month program of computerized cognitive skills training, and works in collaboration with the

consumer and supported employment specialist to identify appropriate jobs, practice newly acquired

cognitive skills in work-related settings, and develop compensatory strategies for managing persistent

cognitive impairments.
NIDRR Program Directory FY 2009 - Employment Outcomes 1-23

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Hampshire

Cognitive Remediation, Illness Self-Management, and Supported

Employment in Severe Mental Illness

Dartmouth College

11 Rope Ferry Road, #6210

Hanover, NH 03755

susan.r.mcgurk@dartmouth.edu

Principal Investigator: Susan McGurk, PhD

Public Contact: 603/271-5747; Fax: 603/271-5265

Project Number: H133G090206

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 09 $198,738

Abstract: The goal of this project is to test the effectiveness of a bundle of services, including supported employment, cognitive rehabilitation (Thinking Skills for Work [TSW] program), and illness

self-management (Illness Management and Recovery program), on improving employment outcomes

and satisfaction of individuals with severe mental illness. The plan of evaluation is multidimensional

with six parts that include assessing: (a) stated objectives, (b) two interventions being implemented

with high fidelity to their models, (c) effectiveness of the TSW program on cognitive functioning, (d)

recovery intervention having intended effect on improving illness and self-management, (e) long term

effects on improving employment outcomes, and (f) perceived consumer experience. Assessment

occurs throughout the project with the first already in place due to the implementation of a current

piloted program. Project outcomes include: (1) knowledge that leads to improved work outcomes for

consumers with severe mental illness who are enrolled in a supported employment programs; and (2)

improvement of cognitive functioning and illness self-management skills in people with severe mental

illness who are participating in supported employment program, in order to help them achieve their

vocational goals and more effectively integrate into the community.

Health and Function

Maximizing health and function among people with disabilities is critical to the

achievement of NIDRR’s mission and the associated higher-order goals of

employment and community participation. Functional ability reflects the complex

interaction between individuals and the environments in which they live.

Accordingly, NIDRR conceptualizes and examines issues of health and function at

the individual and systems levels. Individual level research focuses on the

development and testing of new interventions that improve functional and health

outcomes for individuals. At the systems level, NIDRR-supported research focuses

on the organization, and delivery of health care and medical rehabilitation services.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Disability and Rehabilitation Research Projects .................................................................................. 15

Model Spinal Cord Injury Systems ..................................................................................................... 48

Field Initiated Projects (FIPs) .............................................................................................................. 62

Small Business Innovation Research (SBIR), Phase II ....................................................................... 97

NIDRR Program Directory FY 2009 - Health and Function 2-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center in Neuromuscular

Diseases (RRTC/NMD)

University of California, Davis

Department of Physical Medicine and Rehabilitation (TB191)

School of Medicine

One Shields Avenue

Davis, CA 95616

nmdinfo@ucdavis.edu

www.nmdinfo.net

Principal Investigator: Craig McDonald, MD

Public Contact: Sandy Walsh, Coordinator of Information Services 530/752-3447; Fax: 800/508-

9656

Project Number: H133B031118

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000; FY 06 $800,000; FY 07

$800,000; FY 08 (No-cost extension through 11/30/2009)

Abstract: The purpose of the Rehabilitation Research and Training Center in Neuromuscular Diseases

(RRTC/NMD) is to enhance the health, function, and quality of lives of persons with neuromuscular

diseases (NMD). The goals of this project are to: (1) develop a program for multicenter rehabilitation

research in NMD through the Cooperative International Neuromuscular Research Group (CINRG);

(2) conduct research that continues to address rehabilitation needs, particularly related to exercise,

nutrition, pain, secondary conditions, and the quality of life of individuals with neuromuscular diseases; (3) develop and evaluate new or emerging technologies and interventions that provide the

information needed to improve employment, community integration, and quality of life outcomes for

this population of individuals with disabilities; (4) develop and evaluate appropriate health promotion

and wellness programs that enhance the ability of individuals with neuromuscular disease to be physically active and participate in recreational activities; and (5) conduct a comprehensive program of

training, dissemination, utilization, and technical assistance activities that are well-anchored in the

research program and address the needs of stakeholders.
2-4 NIDRR Program Directory FY 2009 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center in Neuromuscular

Diseases (RRTC-NMD)

University of California, Davis

Department of Physical Medicine and Rehabilitation

School of Medicine

One Shields Avenue

Davis, CA 95616

cmmcdonald@usdavis.edu

Principal Investigator: Craig McDonald, MD 916/734-9516

Public Contact: Sandy Walsh, Coordinator of Information Services 530/752-3447; Fax: 916/734-

7838

Project Number: H133B090001

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 09 $800,000

Abstract: This RRTC has five goals: (1) develop and test improved outcome measures for use in

intervention and natural history studies in persons with neuromuscular diseases (NMDs); (2) identify or

develop and test the effectiveness of new medical rehabilitation interventions, and document the

effectiveness of existing interventions in persons with NMDs; (3) provide training, including graduate,

pre-service, and in-service training, to help rehabilitation personnel effectively provide rehabilitation

services to individuals with NMDs; (4) disseminate informational materials and provide technical

assistance to individuals with NMDs, their representatives, providers, and other interested parties; and

(5) serve as a national center of excellence in rehabilitation research for individuals with disabilities,

their representatives, providers, and other interested parties. This RRTC conducts four research

projects related to developing improved outcome measures. In Project 1, both currently used and novel

clinical endpoints related to mobility and secondary conditions are studied. The clinical meaningfulness

of those outcome measures are assessed in comparison to a new person-reported outcome measure (the

NeuroQOL) which addresses impaired mobility, decreased self-care due to weakness, pain, and

fatigue. In Project 2, the NeuroQOL instrument is further refined and validated for children 5 to 12

years of age who are commonly targeted for new interventions. Projects 3 and 4 evaluate novel and

existing medical rehabilitation interventions in Duchenne muscular dystrophy (DMD). Project 3 uses a

multicenter prospective natural history study of 347 individuals with DMD to evaluate existing medical

rehabilitation interventions designed to enhance mobility and reduce the severity of secondary conditions. Project 4 examines the uses of a first-in-class medication to maintain or improve function in

patients with DMD who have a premature stop codon mutation. Project 4 also focuses on individuals

severely affected with DMD who are non-ambulatory and evaluates ataluren and its effects on mobility/upper extremity function, secondary conditions, and health-related quality of life.
NIDRR Program Directory FY 2009 - Health and Function 2-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Rehabilitation Research and Training Center on Spinal Cord Injury:

Promoting Health and Preventing Complications through Exercise

National Rehabilitation Hospital

MedStar Research Institute

Center for Health and Disability Research

102 Irving Street, NW

Washington, DC 20010

matthew.e.kehn@medstar.net

www.sci-health.org

Principal Investigator: Suzanne L. Groah, MD 202/877-1196

Public Contact: Matthew E. Kehn, Project Coordinator 202/877-1603; Fax: 202/726-7521

Project Number: H133B031114

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000; FY 06 $800,000; FY 07

$800,000; FY 08 (No-cost extension through 11/30/2009)

Abstract: This project systematically and comprehensively addresses the role and impact of physical

activity in the prevention of secondary conditions in people with spinal cord injury (SCI). Initially, the

project establishes critical, yet-undefined physiological responses to exercise in SCI and comprehensively examines cardiovascular disease risk in individuals with SCI applying accepted guidelines used

in the able-bodied population. The project develops exercise formats specifically designed according to

severity of SCI and chronicity of SCI to address the prevention of and knowledge regarding osteoporosis and other secondary conditions. In addition, the project determines whether regular exercise

is related to fewer secondary conditions. These research findings feed into four training activities that

include a peer mentoring program for newly injured people with SCI, a consumer-driven education

curriculum for physical therapy and medical students, a state-of-science and training conference, and

the development of a virtual resource network on exercise and prevention. The RRTC is a collaborative effort of clinical and disability researchers, SCI consumer organizations, and independent living

advocates. In addition to its offerings on www.sci-health.org, the RRTC maintains a Live Journal site

at rrtc-sci.livejournal.com. In addition to other webcast accessible through the Multimedia pages on the

sci-health.org website, the entire Fall 2006 State of the Science Conference is available on demand at

www.sci-health.org/SOS/SOS.php.
2-6 NIDRR Program Directory FY 2009 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Rehabilitation Research and Training Center on Secondary Conditions

in Spinal Cord Injury

MedStar Research Institute

NRH Research

102 Irving Street, NW

Washington, DC 20010

matthew.e.kehn@medstar.net

Principal Investigator: Suzanne L. Groah, MD 202/877-1196

Public Contact: Matthew E. Kehn, Project Coordinator 202/877-1603; Fax: 202/726-7521

Project Number: H133B090002

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 09 $799,995

Abstract: This RRTC focuses on the frequent and costly complications of obesity such as

cardiometabolic syndrome (inclusive of obesity, insulin resistance, hypertension, dyslipidemia, and

inflammation), and pressure ulcers among people with spinal cord injury (SCI), with a specific focus

on the underserved. Utilizing novel diagnostic and therapeutic practices this RRTC addresses three

major secondary conditions that lead to significant health decay in people with SCI. This RRTC

includes three research (R1-R3) and training (T1-T3) projects. Project R1 determines the degree to

which obesity is related to cardiometabolic health, cardiometabolic risk (CMR) factors, and atherosclerotic burden. Those requiring intervention based on CMR profile and atherosclerotic burden in R1 are

selected to participate in Project R2, a randomized control trial examining impact of an omega-3

dietary supplement intervention. Project R3 determines the physiologic response of sacral and ischial

skin to sitting and pressure relief. A behavioral self-management program is assessed to ensure future

recommendations can be evidence-based. These research findings feed into three training activities that

include culturally sensitive consumer education: T1 emphasizes underserved populations; T2 emphasizes professional training and education of rehabilitation and non-rehabilitation professionals utilizing

online media; and T3 emphasizes dissemination through a state-of-science research and training

conference.
NIDRR Program Directory FY 2009 - Health and Function 2-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Enhancing the

Functional and Employment Outcomes of Individuals Who Experience

a Stroke

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611

ejr@northwestern.edu

www.rrtc-stroke.org/

Principal Investigator: Elliot J. Roth, MD 312/238-4637

Public Contact: Linda Lovell, Project Coordinator 312/238-6197; Fax: 312/238-6998

Project Number: H133B080031

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 08 $849,813; FY 09 $849,514

Abstract: As new and better stroke treatments have become available, the number of stroke survivors

living in the community has increased. Therefore, not only is there a need for further research on

promising new interventions that promote health and function, but also a growing need for interventions that can be delivered in home and community settings. This project studies rehabilitation interventions and assessments focused on improved mobility and secondary conditions that have been designed

with the intent of promoting efficient function in the workplace or at home. It also looks at the barriers

and facilitators for return-to-work from the perspective of stroke survivors who are seeking employment. The RRTC research projects include: (1) a study of the effectiveness of stretching as hand

therapy for sub-acute hemiparesis; (2) development of a low-cost, non-mechanized gait retraining

device; (3) testing a self-management approach to community living, participation, and employment;

(4) examining the barriers and enablers for return-to-work from the perspective of the of the individual

who experienced the stroke; and (5) development of a return-to-work vocational assessment using

virtual reality technology. For this project, the Rehabilitation Institute of Chicago has partnered with

Northwestern University, the University of Illinois at Chicago, Washington University at St. Louis,

Marquette University, and Archeworks, Inc, as well as the National Stroke Association and the National Aphasia Association.
2-8 NIDRR Program Directory FY 2009 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Traumatic Brain

Injury Interventions

Mount Sinai School of Medicine

Research and Training Center

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

www.tbicentral.org

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372 (V); 212/241-8978 (TTY); Fax: 212/348-5901

Project Number: H133B040033

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 04 $700,000; FY 05 $700,000; FY 06 $700,000; FY 07 $700,000; FY 08

$700,000; FY 09 (No-cost extension through 9/30/2010)

Abstract: The research program includes two randomized clinical trials (RCTs) and two projects

supportive of better everyday interventions and better research: Research Study 1 (R1) is an RCT of a

treatment for depression: cognitive behavioral therapy, adapted to address the unique cognitive and

behavioral challenges of people with traumatic brain injury (TBI) that often pose barriers to treating

depression, a major factor in reducing post-TBI quality of life, is compared to supportive therapy. In

R2, a second RCT, a standard day treatment program is compared to a similar program (Executive

Plus), augmented with modules to improve executive functioning and attention training. R3, Support

for Evidence-Based Practice, evaluates all published research on post-TBI interventions and assessment of outcomes; it serves as a national resource for disseminating the results. It also implements three

participatory action research-based analyses of high priority areas, including meta-analyses if appropriate. In addressing improved outcome measurement, R4 focuses on the PART instrument, a measure of

participation currently being tested within eight TBI Model Systems. R4 focuses on creating a subjective approach to serve as a complement to the PART’s current focus on objective assessment. A major

focus of the RRTC is placed on capacity building of clinical and research professionals to address the

need for better day-to-day interventions in the lives of people with TBI. Often their medical needs are

misread, their brain injury goes unidentified, and they find services and accommodations inappropriate.

Capacity building focuses on students early in their educational career - to help shape career choice

and points of view; graduate and post-graduate students; and practicing “gate keepers” in the community, primarily psychologists and physicians.
NIDRR Program Directory FY 2009 - Health and Function 2-9

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Ohio

Rehabilitation Research and Training Center on Interventions for

Children and Youth with TBI

Children’s Hospital Medical Center

3333 Burnet Avenue

Cincinnati, OH 45229

shari.wade@cchmc.org

Principal Investigator: Shari L. Wade, PhD

Public Contact: 513/636-3370; Fax: 513/636-7360

Project Number: H133B090010

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 09 $799,337

Abstract: This project addresses the need for interventions for children and youth with traumatic brain

injury (TBI). Interventions designed for this population must: (a) target the continuum of service

delivery; (b) address the changing needs of the population; and most importantly, (c) include tools,

training activities, and dissemination mechanisms for all of the “everyday” people who support children and youth. Project research identifies a reliable and valid measurement battery for assessing

functional improvements arising from TBI interventions; and initiates a national, shared database of

TBI outcomes data. This RRTC: (1) evaluates specific interventions to improve cognitive, behavioral,

and psychosocial outcomes with a range of children and youth with TBI through randomized clinical

trials; (2) evaluates the effectiveness of the validated interventions in natural settings; and (3) uses

multi-method evaluations of the efficacy of training, technical assistance, and dissemination activities to

verify the utility of the final products.
2-10 NIDRR Program Directory FY 2009 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center on Health and Wellness in

Long Term Disability

Oregon Health and Science University

Oregon Institute on Disability and Development

Child Development and Rehabilitation Center

707 Southwest Gaines

P.O. Box 574

Portland, OR 97207-0574

rrtc@ohsu.edu

www.healthwellness.org

Principal Investigator: Charles Drum, PhD 503/494-8364

Public Contact: Susan Wingenfeld 503/494-3533; Fax: 503/494-6868

Project Number: H133B040034

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 04 $700,000; FY 05 $700,000; FY 06 $700,000; FY 07 $700,000; FY 08

$700,000; FY 09 (No-cost extension through 9/30/2010)

Abstract: The vision of the RRTC is to contribute to the reduction of health disparities for person with

disabilities through an integrated program of research, training, technical assistance, and dissemination.

The Center has three inter-related strands of work to address its three intended outcomes/goals: (1)

identify strategies to overcome barriers that impede access to routine healthcare for individuals with

disabilities; (2) identify interventions in areas such as exercise, nutrition, pain management, or complementary and alternative therapies that promote health and wellness and minimize the occurrence of

secondary conditions for persons with disabilities; and (3) develop improved status measurement

tool(s) to assess health and well-being of individuals with disabilities regardless of functional ability. In

order to achieve these outcomes, the RRTC conducts a coordinated program of research and training

activities using a logic model framework. RRTC projects summarize and validate existing research

findings on barriers to health care access as well as rigorously test and compare new strategies to

overcoming identified barriers. The RRTC also examines and evaluates the practices of exemplary

generic and specialized health promotion programs for people with disabilities in order to create an

evidence-based set of evaluation and planning criteria. In addition, the RRTC organizes and uses

panels to assess current health status measurement tools and develops or refines measures to more

accurately reflect the health and well-being of people living with disabilities. Throughout these activities the RRTC disseminates informational materials and provide technical assistance to individuals with

disabilities, their representatives, providers, and other interested parties.
NIDRR Program Directory FY 2009 - Health and Function 2-11

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

South Carolina

Rehabilitation Research and Training Center on Secondary Conditions

in Individuals with SCI

Medical University of South Carolina

77 President Street

P.O. Box 250700

Charleston, SC 29425

cokerj@musc.edu

-b:Principal Investigator: James S. Krause, PhD

Public Contact: Jennifer Coker, MPH 843/792-1337; Fax: 843/792-5649

Project Number: H133B090005

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 09 $794,504

Abstract: The RRTC combines an integrated program of research to identify risk and protective

factors for secondary conditions in spinal cord injury (SCI) with a systematic program of education,

training, dissemination, and technical assistance. This program allows new knowledge to be directly

translated into prevention strategies at the policy, rehabilitative, clinical, community, and individual

consumer levels. The key to prevention of secondary conditions is to first identify to whom they occur

and why, then to widely educate and disseminate new knowledge to professionals and consumers in a

format they can directly use in the prevention of secondary conditions. Through three research studies,

integrating two theoretical models of risk of secondary conditions, the project identifies the risk and

protective factors that put the greatest number of individuals at risk for the greatest number of conditions. Study 1 is a longitudinal follow-up of 1,755 participants who completed an extensive assessment

of risk and protective factors for secondary conditions that include adverse events (e.g., pressure ulcers,

hospitalizations), chronic conditions (e.g., pain, fatigue), and psychosocial conditions (e.g., depressive

disorder). The study examines the stability of secondary conditions and identifies psychological,

environmental, and behavioral predictors of future episodes of secondary condition. Study 2 identifies

the association of access to health services, including initial rehabilitation services (i.e., inpatient,

outpatient only, no rehabilitation), with presence of secondary conditions. By using a population-based

cohort, this study identifies the role of access to services among those with the fewest resources as they

are at greatest risk for secondary conditions. Study 3 utilizes a 17-year follow-up among 845 participants from Rancho Los Amigos National Rehabilitation Center to investigate the stability of metabolic

syndrome over time and its relationship with secondary conditions including pain, fatigue, and a

depressive disorder.
2-12 NIDRR Program Directory FY 2009 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Washington

Multiple Sclerosis Rehabilitation Research and Training Center

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98185

msrrtc@u.washington.edu

www.msrrtc.washington.edu

Principal Investigator: George H. Kraft, MD 206/543-7272

Public Contact: 888/634-6778; 206/221-5302; Fax: 206/685-3244

Project Number: H133B080025

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 08 $850,000; FY 09 $850,000

Abstract: This project conducts a comprehensive program of research on issues critical to individuals

living with multiple sclerosis (MS) in the areas of outcomes measurement, improved medical and

community interventions, and improved employment outcomes. The project includes three coordinated

core areas of research designed to enhance function and employment in individuals with MS. Program

I: The Outcomes Measurement core includes a longitudinal study of 400 people with MS of secondary

conditions such as pain, fatigue, depression, and cognitive impairment, and outcomes such as participation including employment. This program uses modern psychometric techniques to evaluate measures

of these and other secondary conditions, develop cross-walking tables to allow comparison of scores

across measures, and compare levels of pain, fatigue, and depression in MS to norms of the general

population and other disability groups. Program II develops improved medical or community rehabilitation interventions by conducting a randomized controlled trial of individualized self-management

training delivered by telephone to reduce secondary conditions such as fatigue and pain with a generic

psychoeducational intervention for control. This program evaluates the impact on participation, including employment, in addition to evaluating reduction in interference from secondary conditions. Program III improves employment outcomes of persons with MS by examining the national RSA 911

database to identify process and outcome variables associated with successful vocational rehabilitation

(VR) closures. Qualitative interviews are conducted with federal state VR counselors to understand

their perspectives on VR services and MS. Longitudinal data on employment is analyzed to evaluate

changes in employment status over time. Researchers conduct follow-up surveys about impact of

accommodation services on employment with 200 recipients of services from MS Employment Assistance Service. The result is best practices and recommendations for improved employment services.
NIDRR Program Directory FY 2009 - Health and Function 2-13

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Washington

Rehabilitation Research and Training Center on Aging with a Physical

Disability: Reducing Secondary Conditions and Enhancing Health and

Participation, Including Employment

University of Washington

Department of Rehabilitation Medicine

1959 NE Pacific Street

BB-919 Box 356490

Seattle, WA 98195

agerrtc.washington.edu/

Principal Investigator: Mark P. Jensen, PhD; Ivan Molton, PhD; 206/543-3185

Public Contact: 888/634-6778; Fax: 206/685-3244

Project Number: H133B080024

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 08 $850,000; FY 09 $850,000

Abstract: The goal of this center is to foster a better understanding the challenges faced by those aging

with a physical disability. The project focuses on four populations of persons with disabilities: persons

with spinal cord injury (SCI), multiple sclerosis (MS), post-polio syndrome (PPS), and muscular

dystrophy (MD). The project: (1) enhances understanding of the natural course of aging with these

disabilities through a series of longitudinal surveys to examine the effects of aging in the development

of secondary conditions; (2) develops and evaluates measures of key outcome domains for use with

individuals aging with SCI, MS, PPS, and MD utilizing cross-population and cross-measure analyses

to evaluate the psychometric properties of instruments used in disability research, as well as to develop

better measures of depression, fatigue, participation, and pain; (3) tests the efficacy of two innovative

interventions that enhance the health and participation in these populations, using remote monitoring of

activity levels and a pilot intervention featuring remote prompting to enhance self-management of

activity patterns; (4) enhances understanding of the experiences of individuals aging with SCI, MS,

PPS, and MD in the workplace and with vocational rehabilitation and employment services through

secondary data analysis and qualitative interviews; and (5) disseminates the findings from the research

projects in an effective and efficient manner to individuals with disabilities, their family members, and

their health care providers.
2-14 NIDRR Program Directory FY 2009 - Health and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

California

Rehabilitation Engineering Research Center for Successful Aging with

Disability: Optimizing Participation Through Technology (OPTTRERC)

University of Southern California

Division of Biokinesiology and Physical Therapy

1540 Alcazar Street, CHP-155

Los Angeles, CA 90033

winstein@usc.edu

www.isi.edu/research/rerc

Principal Investigator: Carolee J. Winstein, PhD, PT (USC); Philip Requejo, PhD (Rancho Los

Amigos) 323/442-2903

Public Contact: Carolee J. Winstein, PhD, PT 323/442-2903; Fax: 323/442-1515

Project Number: H133E080024

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 08 $950,000; FY 09 $950,000

Abstract: The goal of this project is to enhance the lives of individuals aging with and into disability

through: (1) development and delivery of cutting-edge technologies for identification, evaluation, and

rehabilitation of motor processes that facilitate or impede functional performance, employment, and

community participation for the intended beneficiaries; (2) employment of state-of-the-art data management, dissemination, and performance evaluation techniques to ensure that the knowledge and products emergent from the RERC are accessible for all intended beneficiaries; (3) assembly of a

multidisciplinary team of experts in clinical rehabilitation, engineering, and gerontology, along with a

select group of technology partners, and disability advocates to ensure that OPTT-RERC’s short- and

long-term outcome goals are successfully implemented; and (4) alignment of the clinical and technological strengths of several area programs into an integrated infrastructure to provide training opportunities for future rehabilitation researchers. The Dexterous Manipulation with the Fingertips Project

evaluates a clinically useful metric and rehabilitation strategy for dynamic multifinger dexterity (R1)

and, in collaboration with the second project area, develops a home-use gaming system to promote

retention and improvement of dexterous manipulation via immersion technologies (D1). The Virtual

Reality (VR) and Gaming for Home-Based Motor Assessment and Training Project develops low cost,

home-based VR toolkits (VRT) for motor assessment and rehabilitation (D2) and investigates the

efficacy of the VRT games for use in both the clinic setting and the home for individuals aging with

and into disability (R2). The Optimizing Mobility in the Home and Community for Manual Wheelchair Users Project identifies optimal transfer and lifting mechanics to preserve the shoulder complex

(R3) and uses VRT games for targeted and progressive shoulder exercise while sitting in a wheelchair

(D3). The Neuromuscular Electrical Stimulation (NMES) for Mobility uses implantable wireless

micro-stimulators to prevent recurrences of debilitating pressure ulcers in the middle age and older

individuals with disability (D4).
NIDRR Program Directory FY 2009 - Health and Function 2-15

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Alabama

University of Alabama at Birmingham (UAB) Traumatic Brain Injury

Model System (UAB TBIMS)

University of Alabama/Birmingham

Spain Rehabilitation Center

Physical Medicine and Rehabilitation

619 - 19th Street South, SRC529

Birmingham, AL 35249-7330

novack@uab.edu

www.uab.edu/tbi

Principal Investigator: Thomas A. Novack, PhD

Public Contact: Pamela K. Mott 205/934-3283

Project Number: H133A070039

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $434,398; FY 08 $434,399; FY 09 $434,397

Abstract: This project provides rehabilitation services specifically designed to meet the special needs

of individuals with traumatic brain injury (TBI) through a multidisciplinary, comprehensive model

system which spans the clinical continuum from emergency services through rehabilitation and community re-entry. The project includes one collaborative research module and one in-house research

project, aimed at improving the health and function, as well as the community participation of the

individuals with TBI. The collaborative research module involves examination of the risks and consequences of weight gain after TBI, which has never been explored in depth. The in-house research

project focuses on an in-home training program to improve visual perceptual speed that could impact

return to driving.
2-16 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Northern California Traumatic Brain Injury Model System of Care

Santa Clara Valley Medical Center (SCVMC)

Rehabilitation Research Center

751 South Bascom Avenue

San Jose, CA 95128

jerry.wright@hhs.sccgov.org

www.tbi-sci.org

Principal Investigator: Jeffrey Englander, MD

Public Contact: Jerry Wright 408/793-6433; Fax: 408/793-6434

Project Number: H133A070038

Start Date: October 07, 2007

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 07 $426,720; FY 08 $426,720; FY 09 $426,720

Abstract: This project conducts research with a focus on fatigue in individuals with traumatic brain

injury (TBI). Current studies have identified a strong association of fatigue with sleep disorders,

depression, pain, and cognitive challenges; the prevalence of pituitary dysfunction is high in this group

as well but the level of dysfunction is not proportional to levels of fatigue. This site specific research

effort is a prospective, randomized, single-blind crossover study that evaluates the impact of a graduated physical activity program on fatigue and related factors of depression, sleep quality/daytime

drowsiness, cognitive function, and general health measures.
NIDRR Program Directory FY 2009 - Health and Function 2-17

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

UCHSC Burn Model System Data Coordination Center (BMS/DCC)

University of Colorado Denver - Anschutz Medical Campus

Colorado School of Public Health

Department of Biostatistics and Informatics

13001 East 17th Avenue, Box B119

Aurora, CO 80045

erin.delong@ucdenver.edu

bms-dcc.uchsc.edu

Principal Investigator: Dennis C. Lezotte, PhD

Public Contact: Erin Delong, Project Coordinator 303/724-4388; Fax: 303/724-4491

Project Number: H133A070006

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 07 $300,000; FY 08 $300,000; FY 09 $300,000

Abstract: The Burn Model System Data Collection Center (BMS/DCC) provides scientific and

technical support to the Burn Model Systems’ mission, which is “to conduct research that contributes

to evidence-based rehabilitation and clinical interventions as well as develop practice guidelines that

improve the lives of individuals with burn injuries.” The BMS/DCC addresses four important areas in

rehabilitation research: project design and management, data management and quality, scientifically

appropriate analytical support, and broad dissemination for long-term impact. The data center strives to

provide quality support by developing integrated information systems, providing professional consultation, and designing and delivering dedicated training programs. The primary goal is to improve the

scientific rigor of clinical and rehabilitation research in the area of burn injury. Areas of specific concern include: collecting multi-site longitudinal outcomes data; coordinating multi-center research data;

providing analysis and oversight to achieve scientifically sound multi-center collaborative and sitespecific clinical and rehabilitative research; collaborating with other National Data and Statistical

Centers to exchange ideas and ensure the most efficient operations; publishing scientifically rigorous

articles; and coordinating other effective dissemination strategies. The BMS/DCC consists of two

functionally independent but related units, a data administration core and an analytical core. The data

administration core continues to support and manage the BMS Level 1 (National) Database while

implementing the necessary improvements to ensure quality and scientifically sound data for burn

research. In addition, the data administration core implements web-based data collection and research

support tools for collaborative modules and, as needed, assists in the conduct of the site-specific

research studies. The analytical core provides statistical support (analysis, consultation, study-design,

and study implementation) for projects that use either Level 1 data or data generated from collaborative

and site-specific research.
2-18 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

Collaborative Spinal Cord Injury Model Systems Centers Program:

Improving Spinal Cord Injury Rehabilitation Outcomes

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

gale@craig-hospital.org

www.craighospital.org

Principal Investigator: Gale G. Whiteneck, PhD

Public Contact: 303/789-8204; Fax: 303/789-8441

Project Number: H133A060103

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 06 $2,200,000; FY 07 $900,000; FY 08 $900,000; FY 09 $900,000

Abstract: Inpatient rehabilitation for spinal cord injury (SCI), like all of rehabilitation, has been

studied largely as an undifferentiated black box. Research has examined the whole “rehabilitation

package” but has not addressed which specific therapy interventions, medical procedures, patient

education, counseling, or activities are effective when offered in various combinations or sequences,

for specific types of patients and impairments. To address this limitation, this project uses Clinical

Practice Improvement (CPI) research methodology to isolate specific components of rehabilitation

interventions, and to determine how, and to what degree, each component is associated with outcomes.

Specific aims are to: (1) identify individual patient characteristics, including demographic data, severity

of SCI, and severity of illness (complications and comorbidities), that explain significant variation in

the outcomes of acute rehabilitation for SCI; (2) identify specific medical/nursing procedures and

therapy interventions, or combinations of procedures and interventions that are associated with better

outcomes, controlling for patient characteristics; and (3) determine whether specific impairment-bytreatment interactions are associated with better outcomes. This project is a collaborative research

partnership with five other prominent SCI rehabilitation facilities: Rehabilitation Institute of Chicago,

Shepherd Center, Mt. Sinai Medical Center, National Rehabilitation Hospital, and Carolinas Rehabilitation. Also collaborating is the Institute for Clinical Outcomes Research at International Severity

Information Systems in Salt Lake City, Utah, which has extensive experience applying CPI methodology, and MobileDataForce in Boise, Idaho, with expertise in handheld data capture technology.
NIDRR Program Directory FY 2009 - Health and Function 2-19

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

The National Data and Statistical Center for the Traumatic Brain

Injury Model Systems

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

charrison-felix@craighospital.org

www.tbindsc.org

Principal Investigator: Cynthia Harrison-Felix, PhD

Public Contact: 303/789-8565; Fax: 303/789-8441

Project Number: H133A060038

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 06 $625,000; FY 07 $625,000; FY 08 $625,000; FY 09 $625,000

Abstract: By implementing a comprehensive and innovative program of new data management

technologies and operating procedures that emulate the best practices of clinical research organizations

and data coordinating centers, the National Data and Statistical Center (NDSC) increases the rigor and

efficiency of scientific efforts to longitudinally assess the experience of individuals with traumatic brain

injury (TBI) and advances TBI rehabilitation. The TBIMS database and the NDSC introduce the

following innovations: a state-of-the-art, web-based data management system; a computer-assisted

interview system; a Standard Operating Procedures Manual; training through quarterly web-based

conferences, as well as more frequent in-person conferences; comprehensive Data Collector certification; annual data monitoring visits to each center; analysis of ethnic/racial bias in participant recruitment and retention and collaboration with the NIDRR-funded Center for Capacity Building on Minorities with Disabilities Research; providing more comprehensive methodological as well as statistical

consultation; continuation of the TBIMS survival study; a system for following participants from

defunded centers; and the use of common procedures, technologies, and training among all Model

System Data Centers.
2-20 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

The Rocky Mountain Regional Brain Injury System (RMRBIS)

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

charrison-felix@craighospital.org

www.craighospital.org/Research/TBIModelsystems.asp

Principal Investigator: Gale G. Whiteneck, PhD 303/789-8204

Public Contact: Cynthia Harrison-Felix, PhD 303/789-8565; Fax: 303/789-8441

Project Number: H133A070022

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 07 $426,720; FY 08 $426,720; FY 09 $426,720

Abstract: The Rocky Mountain Regional Brain Injury System (RMRBIS) conducts two site specific

research projects, participates in three collaborative research modules, contributes to the longitudinal

Traumatic Brain Injury (TBI) National Database, and maintains a TBI Model System of care and

research. Research Project R1: Atomoxetine (Strattera) for the treatment of attention disorders in

individuals with TBI determines if the only drug approved for attention deficit hyperactivity disorder

improves attention, behavioral functioning, and depression in individuals with TBI, using a randomized double-blind placebo-controlled crossover study design. Research Project R2: A health and

wellness intervention for individuals with TBI, evaluates a specific, replicable small-group educational

approach to improve health-related self-efficacy, health promoting behaviors, and health-related quality

of life in individuals with TBI using a randomized wait list control group study design. If effective, this

intervention could improve the health and wellness of the many people with secondary conditions and

less than healthy lifestyles after TBI. Collaborative Module 1: Sexuality after TBI examines the frequency, type, and severity of changes in sexual function associated with TBI. Collaborative Module 2:

Natural history of headache after TBI investigates incidence, prevalence, and types of headache after

TBI. Collaborative Module 3: Enhancing Core dataset to expand research on environmental influences

affecting outcomes from TBI evaluates the feasibility, reliability, and utility of recording geographic

identifiers for place of residence after TBI.
NIDRR Program Directory FY 2009 - Health and Function 2-21

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Reducing Obesity and Obesity-Related Secondary Conditions in

Adolescents with Disabilities

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Suite 712 M/C 626

Chicago, IL 60608-6904

jrimmer@uic.edu

www.rectech.org

Principal Investigator: James H. Rimmer, PhD

Public Contact: 312/413-9651; Fax: 312/355-4058

Project Number: H133A060066

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 06 $250,000; FY 07 $250,000; FY 08 $250,000; FY 09 (No-cost extension

through 10/31/2010)

Abstract: This project examines the antecedents and consequences of obesity using the ICF framework that addresses both person and environment contextual factors that relate to obesity in adolescents with disabilities; evaluates the validity and utility of an alternative approach for establishing more

accurate cutoff points for overweight and obesity in adolescents with disabilities; develops a pilot

intervention using an innovative personalized exercise and nutrition program (PEP-for-Youth) for

managing obesity among youth with physical and developmental disabilities; and develops mutually

beneficial working partnerships with community-based organizations to promote reduction of obesity

in youth with disabilities. The research projects operate in partnership with Shriners Hospitals for

Children and five national disability organizations (Easter Seals, United Cerebral Palsy, Spina Bifida

Association, the Arc, and Blaze Sports America).
2-22 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Midwest Regional Traumatic Brain Injury Model System: Innovative

Approaches to Improve Cognition, Function, and Community Living

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611

www.ric.org/research/centers/MRTBIMS/index.aspx

Principal Investigator: Elliot J. Roth, MD; Felise Zollman, MD; 312/238-4637; 312/238-8045

Public Contact: Elliot J. Roth, MD 312/238-4637; Fax: 312/238-1417

Project Number: H133A080045

Start Date: October 01, 2008

Length: 48 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $418,139; FY 09 $418,528

Other Funding: FY 09 Rehabilitation Institute of Chicago

Abstract: The Midwest Regional Traumatic Brain Injury Model System (MRTBIMS) accomplishes

several important objectives in support of an interdisciplinary, multidimensional center focused on

providing and improving care for people with traumatic brain injury (TBI). MRTBIMS establishes a

coordinated, multilevel, interdisciplinary system of care for people with TBI, including pre-hospital,

emergency, acute, long-term acute, intensive rehabilitation, and community care. This continuum of

care is provided at Northwestern Memorial Hospital, RML Specialty Hospital, and the Rehabilitation

Institute of Chicago and its System of Care. Data is submitted on at least 35 TBI patients per year to

the National TBI Database. Research plans include implementation of two site-specific research

projects, which consist of clinical trials on the effectiveness of acupuncture to improve sleep in TBI

patients and on the effectiveness of a virtual reality robotics program to improve attention and concentration in TBI patients. The Center is engaged in dissemination of educational and other materials on

TBI to a variety of target audiences, including persons with TBI and their families, professionals who

care for patients with TBI, and the public—collaborating with the Brain Injury Association of Illinois

and other NIDRR-funded centers as appropriate.
NIDRR Program Directory FY 2009 - Health and Function 2-23

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Maryland

Johns Hopkins University Burn Injury Rehabilitation Model System

(JHU-BIRMS)

Johns Hopkins School of Medicine

Johns Hopkins Burn Center Adult Unit

Johns Hopkins Bayview Medical Center Pediatric Unit; Johns Hopkins Hospital

4940 Eastern Avenue

Baltimore, MD 21224

smason23@jhmi.edu

www.hopkinsmedicine.org/burn/research/index.html

 www.hopkinsmedicine.org/burn/research/psqscq.pdf

Principal Investigator: James A. Fauerbach, PhD 410/550-0894

Public Contact: Shawn Mason, PhD 410/550-9846; Fax: 410/550-8161

Project Number: H133A070045

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $362,500; FY 08 $362,500; FY 09 $362,500

Abstract: The Johns Hopkins University-Burn Injury Model System (JHU-BIMS) includes three

projects: two site-specific randomized, controlled trials (RCT), and one multi-site collaborative study.

The first site-specific project is an RCT to test the efficacy of an innovative “Augmented Exercise

Program” in enhancing recovery of strength and endurance in those with generalized deconditioning.

Preliminary results demonstrate that this 12-week, 36-session conditioning regimen, relative to baseline

and to usual care, significantly improves aerobic conditioning. The second site-specific project is an

RCT to test the effectiveness of an intervention entitled “Safety, Meaning, Activation, and Resilience

Training” (SMART). SMART is a four-session intervention that aims to reduce acute psychological

distress and sleep disturbance and to thereby prevent chronic psychiatric disorders and disability. Pilot

data show that SMART effectively reduces post-trauma distress, sleep disturbance, and depression.

The third project is a multi-site collaborative module entitled “Long-Term Follow-up of the National

Database Sample” that extends follow-up to five years post-burn. The NIDRR funded Burn Model

System national database provides an unprecedented opportunity to conduct a prospective, multi-site

study to assess the long term needs of burn survivors. The Johns Hopkins Burn Center continues to

contribute to the Burn Model System national database, as well.
2-24 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Michigan

Michigan Traumatic Brain Injury Model System (SEMTBIS)

Wayne State University

5057 Woodward Avenue, Suite 6402

Detroit, MI 48202

ckoviak@dmc.org

www.semtbis.org

Principal Investigator: Robin A. Hanks, PhD 313/745-9763

Public Contact: Carole Koviak, RN 313/745-9737; Fax: 313/745-9854

Project Number: H133A080044

Start Date: October 01, 2008

Length: 48 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $438,074; FY 09 $437,676

Abstract: SEMTBIS focuses on the following major areas: research, education, clinical and systems

analysis studies, collection and dissemination of data, and promotion of professional development for

individuals with disabilities as well as their family members or caregivers. Two studies address enhancement of health and function of persons with traumatic brain injury (TBI). Projects evaluate the

predictive validity of three newly developed brain magnetic resonance imaging (MRI) techniques with

respect to functional independence, level of disability, and neurobehavioral outcomes at one and two

years post-injury; and examine the safety and efficacy of an antibiotic medication that is thought to

positively influence neuroplasticity in the acute stages of recovery from TBI. SEMTBIS recruits,

educates, and promotes professional development of individuals with disabilities as well as their family

members or caregivers; with consumer involvement in the advisory board and as project staff.

SEMTBIS continues to participate in clinical and systems analysis studies of the TBIMS by collecting

and contributing data to a uniform, standardized national database on patient characteristics, diagnoses,

causes of injury, interventions, outcomes, and costs. Evaluation of these research projects and the

overall operations of the SEMTBIS employs a multifaceted approach of quantifiable and objective

procedures.
NIDRR Program Directory FY 2009 - Health and Function 2-25

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Minnesota

Health Care Coordination for Individuals with Physical Disabilities:

Critical Elements and Consumer Outcomes

University of Minnesota

Institute on Community Integration

111 Pattee Hall; 150 Pillsbury Drive Southeast

Minneapolis, MN 55455-0223

abery001@umn.edu

Principal Investigator: Brian Abery, PhD

Public Contact: 612/625-5592; Fax: 612/624-9344

Project Number: H133A080049

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 08 $277,233; FY 09 $282,465

Abstract: This project creates new knowledge about health care coordination within Minnesota’s

Special Needs Basic Care (SNBC) program. Project activities include establishing and testing an

operational definition of health care coordination for adults with physical disabilities and examining the

extent to which the various components of health care coordination enhance access to health care,

improve health outcomes, and create cost savings. The project uses a Participatory Planning and

Decision Making process and key informant interviews to identify, classify, and richly describe care

management models used in SNBC as well as the critical components of effective care coordination.

Cognitive testing and reliability and validity assessment are used to modify several instruments to

measure the elements of managed care and managed care outcomes for persons with physical disabilities. Finally, a combination of survey research (in-person interviews) and analysis of secondary data

sets (Centers for Medicaid and Medicare utilization information, and Minnesota Department of Human

Services assessment and utilization data) is used to examine managed care outcomes for a total of 350

individuals participating in the SNBC program, taking into account variables such as type and severity

of disability (including the presence of dual diagnoses), urban or rural location, age, and other demographic characteristics known or hypothesized to be associated with health care access, outcomes and

costs. The impact of care coordination models is tested on several outcomes including health care

access (Health Care Quality Scale, annual DHS mandated health care accessibility survey results),

outcomes (including but not limited to health care self-direction, stress, disability impact), and costs.

Products from this line of research include an operational definition of the elements of care coordination, validated reliable instrumentation to measure elements of care coordination, and academic and

research-to-practice publications describing the impact of care coordination on access to health care,

health care outcomes, and cost.
2-26 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Minnesota

Mayo Clinic Traumatic Brain Injury Model System

Mayo Clinic

Mayo Clinic College of Medicine

Mayo Foundation for Medical Education and Research

200 First Street

Rochester, MN 55905

brown.allen@mayo.edu

www.mayo.edu/model-system

Principal Investigator: Allen W. Brown, MD

Public Contact: Anne Moessner 507/255-3116; Fax: 507/255-7696

Project Number: H133A070013

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 07 $423,590; FY 08 $423,590; FY 09 $423,590

Abstract: The purpose of the Mayo Clinic Traumatic Brain Injury Model System (TBIMS) is to

provide comprehensive, integrated, team-based rehabilitation care and education to individuals with

traumatic brain injury (TBI), their families, and significant others along the continuum of recovery and

to fill gaps in research knowledge and service delivery through clinical research that promotes full

personal and social participation. The Mayo Clinic TBIMS conducts one site-specific project. This

project, an Advocacy Training Clinical Trial (ATCT), targets the gap in knowledge concerning the

most efficacious method of teaching effective self and system advocacy skills. The goal of the ATCT is

to identify efficacious advocacy training methods using a randomized practical behavioral trial methodology in three Midwest states. Objectives of the ATCT are threefold: (1) develop TBI specific measures of advocacy activity, perceived control, and self efficacy; (2) implement, evaluate, and continuously improve upon the ATCT; and (3) assess the statewide impact of the ATCT on greater

communities, public policy, systems change, and in the media. The ATCT is designed to establish a

sustainable program of efficacious and effective advocacy training in the trial communities, and provide a model for implementation in other communities.
NIDRR Program Directory FY 2009 - Health and Function 2-27

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Jersey

A Multicenter Prospective Randomized Controlled Trial of the

Effectiveness of Amantadine Hydrochloride in Promoting Recovery of

Function Following Severe Traumatic Brain Injury

JFK Johnson Rehabilitation Institute

Center for Head Injuries

2048 Oak Tree Road

Edison, NJ 08820

jgiacino@solarishs.org

www.njrehab.org/tbims/index.asp

Principal Investigator: Joseph T. Giacino, PhD

Public Contact: 732/205-1461; Fax: 732/632-1584

Project Number: H133A031713

Start Date: January 01, 2004

Length: 48 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 03 $599,862; FY 04 $599,994; FY 05 $599,994; FY 06 $599,994; FY 07

$599,994; FY 08 (No-cost extension through 12/31/09)

Abstract: This project conducts a prospective double blind randomized controlled trial of amantadine

hydrochloride on disorders of consciousness. Severe traumatic brain injury may result in severe disorders of consciousness (DOC), including coma, the vegetative state (VS) and the minimally conscious

state (MCS). The longer the duration of impaired consciousness, the worse the ultimate functional

prognosis, with only about half of those individuals who remain unconscious for a month post-TBI

regaining consciousness within a year. The severe functional disability associated with prolonged

DOC places enormous emotional, financial, ethical, and logistical strains on caregivers and major

resource demands on society. In this study, seven facilities (including two with TBI Model Systems

designations) that participated in a multi-center research network called the Consciousness Consortium,

join with four additional brain injury rehabilitation centers (two in the U.S. and two in Europe) and a

Data Coordinating Center at Columbia University. 184 patients who remain in VS or MCS 4 to 16

weeks post-TBI are randomized in a stratified fashion to 4 weeks of amantadine (200 to 400 mg/day)

vs. placebo, followed by a two-week washout period. The Disability Rating Scale (DRS) is the primary dependent variable with the Coma Recovery Scale-Revised (CRS-R) serving as a supplementary

measure. The project also explores whether treatment response differs by time post-injury and by

diagnosis (i.e., VS or MCS) at treatment onset, and whether specific outcomes of importance to

caregivers are achieved more often in the amantadine group. The project includes intensive education

of caregivers and clinicians about this study to address perceived barriers to enrollment and also uses

the information gathered during these interactions to develop consumer-oriented dissemination activities. Project outputs and findings are disseminated to appropriate consumer and professional audiences

using a variety of formats and include: (1) improved family member understanding of DOC which will

facilitate improved adjustment and caregiving and (2) clear guidance to clinicians regarding the effectiveness of amantadine for persons with DOC.
2-28 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Jersey

JFK-Johnson Rehabilitation Institute TBI Model System

JFK Johnson Rehabilitation Institute

2048 Oak Tree Road

Edison, NJ 08820

tbims@solarishs.org

www.njrehab.org/tbims

Principal Investigator: Keith D. Cicerone, PhD

Public Contact: 732/906-2640; Fax: 732/906-9241

Project Number: H133A070030

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $419,921; FY 08 $419,921; FY 09 $419,921

Abstract: Site-specific research represents a sustained investigation of cerebral activation in patients

with disorders of consciousness (DOC): vegetative state (VS) and minimally conscious state (MCS).

At present, clinical judgment and experience guide diagnostic, prognostic, and treatment decisions for

individuals with DOC. Prior research on functional MRI (fMRI) activation patterns suggests that

patients in MCS retain the neural circuits for receptive language and visual processing. This project

tests a novel fMRI protocol that is designed to reliably detect conscious awareness in patients who may

be unable to execute behavioral signs of active cognitive processing, using a hierarchical stimulation

paradigm that systematically assesses levels of cognitive processing in the auditory and visual systems.

In light of provocative findings suggesting that cognitive processing may be maintained in patients

who appear to be unconscious on bedside examination, the investigation is extended to individuals

with VS as well as those in MCS. A collaborative module extends prior investigations of the effectiveness of specialized, post-acute brain injury rehabilitation. This project is driven by the question of how

to characterize the course of post-acute brain injury rehabilitation, and its impact on the long term

outcomes of people with brain injuries. Although there is increasing evidence that postacute brain

injury rehabilitation can improve functional outcomes after TBI, population-based outcome studies

have generally not considered the influence of different pathways of postacute rehabilitation on outcomes after TBI. A longitudinal, observational study characterizes postacute rehabilitation in the TBI

Model Systems, and examines the pathways of postacute rehabilitation in relation to casemix variables,

patterns of service utilization, barriers to service delivery, and participants’ perceived needs and satisfaction with treatment. This collaborative project examines the contribution of postacute rehabilitation

to functional and psychosocial outcomes at one and two years after injury using multivariate analyses

and causal modeling.
NIDRR Program Directory FY 2009 - Health and Function 2-29

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Jersey

Northern New Jersey Traumatic Brain Injury System (NNJTBIS)

Kessler Foundation Research Center

1199 Pleasant Valley Way

West Orange, NJ 07052

tbi@kesslerfoundation.org

www.kesslerfoundation.org/research/lab/modelsys.php

Principal Investigator: Nancy D. Chiaravalloti, PhD; Bruce M. Gans, MD; 973/530-3640

(Chiaravalloti); 973/324-3658 (Gans)

Public Contact: 973/530-3640; Fax: 973/324-3536

Project Number: H133A070037

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $423,590; FY 08 $423,590; FY 09 $423,590

Abstract: The Northern New Jersey Traumatic Brain Injury System (NNJTBIS) conducts both a sitespecific research study and a collaborative research module. These projects, both related to ongoing

NIH-funded studies, contribute to evidence-based rehabilitation interventions and quality of life measurement to improve the lives of individuals with traumatic brain injury (TBI), as follows: (1) An

innovative, double-blind, randomized controlled trial of a cognitive rehabilitation intervention utilizing

a proven methodology shown to be effective with the multiple sclerosis population; and (2) a collaborative module that adapts, develops, and validates an innovative quality-of-life outcome measurement

system for use in TBI intervention research. Each of these projects has been subjected to initial pilot

testing to assure the applicability and feasibility of the methodology. The evaluation of this project is

guided by a multifaceted approach, which uses a highly quantifiable, objective means of evaluating

progress. This is supplemented by a Community Advisory Board, NNJTBIS Steering Committee, and

an external Scientific Advisory Board, which provides feedback on a quarterly, annual, and bi-annual

basis, respectively. In addition, project management staff meets internally on a regular basis to review

data management and data quality issues and assure effective communication with Kessler Institute for

Rehabilitation (KIR) and staff from the trauma centers. Finally, the NNJTBIS coordinates with the

NIDRR-funded Model Systems Knowledge Translation Center at the University of Washington to

provide scientific results and information for dissemination to clinical and consumer audiences. The

NNJTBIS is a cooperative effort of the Kessler Foundation Research Center, KIR, and trauma centers

from the University of Medicine and Dentistry of New Jersey - The New Jersey Medical School

(UMDNJ-NJMS), Hackensack University Hospital, Morristown Memorial Hospital, and St. Joseph’s

Hospital.
2-30 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

New York Traumatic Brain Injury Model System (NYTBIMS)

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

Research and Training Center

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

www.mssm.edu/tbicentral/nytbims/

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372; Fax: 212/348-5901

Project Number: H133A070033

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 07 $419,921; FY 08 $419,920; FY 09 $419,920

Abstract: The research program of The New York Traumatic Brain Injury Model System

(NYTBIMS) aims to advance the understanding of traumatic brain injury (TBI) and develop better

methods of treating secondary conditions of TBI, especially fatigue, mood, cognition, and sleep

disorders. Research goals of this project are to: (1) demonstrate and evaluate a multidisciplinary system

of care for persons with TBI in the New York City metropolitan area, including a number of innovative clinical programs; (2) contribute longitudinal data to the National Database of the TBI Model

Systems program; and (3) conduct one module and two local studies to: (a) systematically study sleep

architecture, insomnia, and other types of sleep disorders after TBI, to better understand post-TBI

fatigue; and (b) evaluate the effectiveness of exercise as a treatment of post-TBI fatigue, mood, and

cognition. Dissemination, education, and training activities constitute the third component of the

NYTBIMS, including a policy newsletter, expanded web-based information, journal publications,

presentations at national and local meetings, a newsletter for consumers, and several formal educational

and training programs, including training of physiatric residents as well as interns and postdoctoral

researchers in psychology.
NIDRR Program Directory FY 2009 - Health and Function 2-31

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Classification and Measurement of Medical Rehabilitation

Interventions

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

One Gustave L. Levy Place, Box 1240

New York, NY 10029-6574

marcel.dijkers@mssm.edu

p:Principal Investigator: Marcel Dijkers, PhD

Public Contact: 212/659-8587; Fax: 212/348-5901

Project Number: H133A080053

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 08 $350,000; FY 09 $350,000

Abstract: The development of a Rehabilitation Treatment Taxonomy (RTT) covering all treatments

(experience-based, medications, education, assistive devices, etc.) delivered in medical rehabilitation is

a multi-year, multidisciplinary process requiring the interweaving of many different conceptual and

empirical steps, which needs to be guided by an overall blueprint to direct and link individual efforts.

This project develops such a blueprint, and performs research to explore strategies and methods that

are needed to create and test the full RTT. Specifically, in phase 1, the project scrutinizes existing

treatment literature for theories that underlie treatment; develops a theoretical framework; specifies

performance requirements and practical constraints for an RTT; and reviews existing ad-hoc classifications for spinal cord injury (SCI), traumatic brain injury (TBI), stroke, and joint replacement rehabilitation for practicality. Researchers present the resulting blueprint for feedback at an interdisciplinary

conference with representatives of all rehabilitation disciplines, revised as necessary in response to

feedback, and, in phase 2, uses this feedback to develop two partial taxonomies: (a) of interventions to

improve ambulation in persons with neurological disorders, and (b) of treatments of executive dysfunction after acquired brain injury. Evaluation of the process of development and operationalization of the

taxonomy is used to modify, expand, and enhance the blueprint. A second interdisciplinary conference

is used to present the modified blueprint to the rehabilitation field and obtain input on directions the

field needs to take to develop the entire RTT.
2-32 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

North Carolina

Carolinas Traumatic Brain Injury Rehabilitation and Research System

(CTBIRRS)

Carolinas HealthCare System

Carolinas Rehabilitation

1100 Blythe Boulevard

Charlotte, NC 28203

fhammond@carolinas.org

www.carolinasrehabilitation.org/body.cfm?id=191

Principal Investigator: Flora M. Hammond, MD

Public Contact: 704/355-4330; Fax: 704/355-0709

Project Number: H133A070042

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $438,571; FY 08 $438,571; FY 09 $438,571

Abstract: The Carolinas Traumatic Brain Injury Rehabilitation and Research System (CTBIRRS) is a

comprehensive service delivery and research system serving individuals with traumatic brain injury

(TBI). The System begins with prevention and emergency medical services and extends through

intensive care, acute care, and comprehensive medical rehabilitation to long-term follow-up, community reintegration, and vocational rehabilitation. The research of this Model System focuses on the

challenging problem of post-traumatic irritability and aggression using a comprehensive, rigorous

approach to generate and disseminate new knowledge on this high impact, pervasive, and understudied problem. This approach to understanding irritability entails two randomized, controlled studies

that build on a solid base of prior research by the investigators in this area: (1) a multi-center module

study: “A Multi-Center, Parallel-Group, Randomized, Double-Blind, Placebo-Controlled Trial of

Amantadine Hydrochloride for the Treatment of Chronic TBI Irritability and Aggression: A Replication Study”; and (2) a local research study: “Carbamazepine for the Treatment of Chronic Post-TBI

Irritability and Aggression: A 42-day Single-Site, Forced-Titration, Parallel-Group, Randomized,

Double-Blind, Placebo-Controlled Trial.” The research studies were developed with in-depth input

from the TBI community, with a solid plan for continued input along the course of the project through

all aspects including research implementation, interpretation of findings, knowledge translation, project

planning, and evaluation. The evaluation plan is directly linked to the target impacts, and provides a list

of clear criteria to facilitate project administration, judge success, ensure dissemination of findings, and

provide iterative feedback. CTBIRRS utilizes innovative means of knowledge translation to target

audiences (consumers, providers, researchers, third party payers, policy makers), including a consumer

conference, provider skill packs and workshops, fact sheets, tip cards, surveys of current practices,

peer-reviewed publications, scholarly presentations, and evidence-based reviews. The project evaluates

target familiarity with the subject matter and product usefulness. The CTBIRRS project collaborates

with the Model System Knowledge Translation Center to disseminate materials that integrate project

findings within the larger body of research on post-TBI behavioral management.
NIDRR Program Directory FY 2009 - Health and Function 2-33

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

North Carolina

TBI Model System Collaborative Study of Amantadine for Post TBI

Irritability and Aggression

Carolinas Rehabilitation

1100 Blythe Boulevard

Charlotte, NC 28232

flora.hammond@carolinashealthcare.org

www.carolinasrehabilitation.org/body.cfm?id=200

i:Principal Investigator: Flora M. Hammond, MD

Public Contact: 704/355-4330; Fax: 704/355-0709

Project Number: H133A080035

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 08 $855,000; FY 09 $855,000

Abstract: This study focuses on the challenging problem of irritability (primary aim) and aggression

(secondary aim) in post-traumatic brain injury by using a rigorous approach to generate and disseminate new knowledge on this high impact, pervasive, and under-studied problem that affects approximately 29-71 percent of individuals with traumatic brain injury (TBI). Building upon prior research,

project goals include: (1) assess the effect of amantadine for 28 days at reducing TBI irritability; (2)

assess the effect of amantadine for 28 days at reducing TBI aggression; (3) assess the effect of amantadine for 60 days on TBI irritability and aggression; and (4) assess the effect of amantadine on cognitive

function following TBI. Continuous input from the TBI community is incorporated into the development and implementation of the project, and throughout the course of this project in the areas of

research implementation, interpretation of findings, knowledge translation, project planning, and

evaluation. Additionally, this project is a collaborative research partnership between five other prominent TBI research centers: University of Washington, The Institute for Rehabilitation and Research,

The Ohio State University, Kessler Institute for Rehabilitation, and Spaulding Rehabilitation Hospital.

The knowledge generated by this project benefits those living with TBI by increasing awareness

through targeted products and training with healthcare providers, consumers, researchers, vocational

counselors, independent living providers, third party payers, and policy makers.
2-34 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Ohio

Ohio Regional TBI Model System

Ohio Valley Center for Brain Injury Prevention and Rehabilitation

Department of Physical Medicine and Rehabilitation

Ohio State University

Dodd Rehabilitation Hospital

480 Medical Center Drive

Columbus, OH 43210

brello.1@osu.edu

www.ohiovalley.org

Principal Investigator: John D. Corrigan, PhD; Jennifer Bogner, PhD; 614/293-3830

Public Contact: 614/293-8879; Fax: 614/293-6521

Project Number: H133A070029

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 07 $434,393; FY 08 $457,354; FY 09 $434,353

Abstract: This project includes one local research project and a collaborative research module. The

local project is an extension of two previous randomized clinical trials in which a targeted financial

incentive was found efficacious for engaging and retaining persons with traumatic brain injury (TBI) in

substance abuse treatment. The current study investigates the efficacy of a financial incentive for

engendering attendance at work as persons with TBI and substance use disorders initiate employment.

The collaborative research module replicates and extends a preliminary study recently completed at

OSU. That project used geographic identifiers to compile data about the social and economic characteristics of a person’s neighborhood. Researchers then examined the contribution of these environmental factors to outcomes from TBI. The current module contributes to an evaluation of the utility of

adding a geographic identifier, based on a person’s residence at follow-up, to the TBI Model Systems

National Dataset. With this identifier, future Model Systems researchers could access an ever-growing

array of information about the environment and link it to Model Systems data about an individual’s

outcome. Dissemination efforts include “SynapShots”, an educational website produced with the Brain

Injury Association of America, and a systematic review of Screening and Brief Interventions for the

Model Systems Knowledge Translation Center.
NIDRR Program Directory FY 2009 - Health and Function 2-35

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Ohio

Individualized Planning for the First Year Following Acute

Rehabilitation Project

Ohio State University

1166 Dodd Rehab Hospital

480 Medical Center Drive

Columbus, OH 43210

brello.1@osu.edu

www.ohiovalley.org

Principal Investigator: John D. Corrigan, PhD

Public Contact: Jennifer Brello, Med 614/293-8879; Fax: 614/293-4870

Project Number: H133A080023

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 08 $854,780; FY 09 $854,881

Abstract: The Individualized Planning for the First Year Following Acute Rehabilitation Project is a

multi-center research partnership among the Ohio Regional TBI Model System, the Institute for

Clinical Outcomes Research in Salt Lake City, Utah, and the TBI Model Systems National Data and

Statistical Center and the Rocky Mountain Regional Brain Injury System at Craig Hospital in Colorado. This project conducts a Practice Based Evidence (PBE) study of individual differences in demographic characteristics, pre-morbid status, injury-related conditions, and medical course that differentially predict the effectiveness of rehabilitation interventions on functional independence, participation,

and subjective well-being up to one year following traumatic brain injury (TBI). Incorporating data

collected for the NIH-funded PBE study, this project focuses on acute rehabilitation, and on the recovery processes occurring after discharge from rehabilitation. PBE methodology studies naturally occurring differences in treatment practices in order to identify individual differences in treatment effectiveness. It allows a large number of intervention-by-impairment interactions to be examined, while

individual patient differences, including severity of TBI and medical complications, are controlled.

Data is collected at 10 TBI rehabilitation programs in the United States and Canada: Ohio Regional

TBI Model System, Carolinas TBI Model System, New York TBI Model System at Mt. Sinai, National Rehabilitation Hospital, Shepherd Center, Intermountain Medical Center, Rush University

Medical Center, Brooks Rehabilitation Hospital, Loma Linda University Rehabilitation Institute, and

the Toronto Rehabilitation Institute. Research subjects are 2,315 consecutive, consenting patients

admitted for rehabilitation of a moderate or severe TBI. Interviews occur at 3 and 6 months postdischarge and 1 year post-injury allowing for detailed characterization of change during the first year

of recovery.
2-36 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Oregon

Health and Health Care Disparities Among Individuals with Disabilities

Oregon Health and Science University

Child Development and Rehabilitation Center

P.O. Box 574

Portland, OR 97239

Principal Investigator: Charles Drum, PhD 503/494-8364

Public Contact: Susan Wingenfeld 503/494-3533; Fax: 503/494-6868

Project Number: H133A080031

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 08 $450,000; FY 09 $450,000

Abstract: The Health Disparities Project generates new knowledge about health access and health

outcomes, and translates and disseminates the findings for researchers, policy makers, and others.

Assisted by an assembled national expert panel and other key project staff, the project determines

working definitions, key questions, and analytic models for the studies. Disability perspectives are

integrated throughout the project process from development of the research hypotheses and selection of

design to analysis of data. This project has four major components: (1) review and synthesize existing

health and health care access among individuals with disabilities and subgroups of individuals with

disabilities; (2) use the Medical Expenditure Survey data to perform two series of logistic regression

and path analysis modeling studies; the first series of studies determines models of systems level,

environmental level, and individual level factors that relate to health care access among persons with a

range of disabilities; the second series extends these analyses to determine models of health outcomes

for persons with a range of disabilities; (3) utilize research findings in future research, program, and

policy development through proactive and passive dissemination methods; and (4) integrate project

activities to ensure the field of health disparities research advances beyond documentation to explanation, and opportunity for resolution.
NIDRR Program Directory FY 2009 - Health and Function 2-37

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Pennsylvania

The Moss Traumatic Brain Injury Model System

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

60 East Township Line Road

Elkins Park, PA 19027

thart@einstein.edu

www.einstein.edu/facilities/mossrehab/index.html

Principal Investigator: Tessa Hart, PhD

Public Contact: 215/663-6153; Fax: 215/663-6113

Project Number: H133A070040

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $434,399; FY 08 $434,399; FY 09 $434,399

2Abstract: The Moss TBIMS includes two site-specific research projects embedded within a state-ofthe-art traumatic brain injury (TBI) treatment and clinical research facility. Project 1 is a placebocontrolled pilot study of the effects of dextroamphetamine (DEX) on attention, engagement in therapy,

cognitive and motor speed, and other outcomes in subacute TBI. This project also examines the

possibility that DEX accelerates the pace of functional recovery in the subacute phase. Project 2 is a

cross-national collaboration with a specialty TBI service in a Copenhagen hospital, which has many

similarities to the Moss TBIMS in terms of patient mix, treatment philosophy, and cultural milieu. The

Copenhagen facility provides significantly longer and, in some respects, more intensive inpatient care

and rehabilitation compared to Moss (and other US rehabilitation facilities), even for patients with

comparable injury severity. This affords a natural experiment in which persons with TBI treated at the

two facilities are compared on a range of 6- and 12-month outcomes, including functional status,

emotional well-being and quality of life, and caregiver burden. The Moss TBIMS also collaborates in

multi-center longitudinal database research and collaborative module projects. In addition, extensive

knowledge translation projects provide evidence-based skills and knowledge enhancement for clinicians specializing in TBI care and for consumers via collaboration with the Brain Injury Association of

Pennsylvania.
2-38 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

North Texas Burn Rehabilitation Model System (NTBRMS)

The University of Texas Southwestern Medical Center

Department of Physical Medicine and Rehabilitation

5323 Harry Hines Boulevard

Dallas, TX 75390-9136

radha.holavanahalli@utsouthwestern.edu

www.utsouthwestern.edu/utsw/home/research.ntbrms

Principal Investigator: Karen Kowalske, MD 214/648-2288

Public Contact: Radha Holavanahalli, PhD 214/648-9540; 214/648-3654; Fax: 214/648-2005

Project Number: H133A070024

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 07 $362,500; FY 08 $362,500; FY 09 $362,500

Abstract: The North Texas Burn Rehabilitation Model System (NTBRMS) includes one collaborative

research module project entitled “Long-Term Follow-up of the Burn Model System National Database

Sample (LTF=NDS)” and two site specific research studies entitled “Biomechanical Properties of Burn

Scar” and “Efficacy of Social Interaction Skills Training Post Burn Injury.” Collaboration occurs on

many levels at the NTBRMS. Clinical collaboration is the hallmark of the burn team, which includes

individuals from several institutions who work together seamlessly as well as collaboration with our

rural care providers through outreach clinics. Research collaboration occurs locally with the surgeons

and academic computing and nationally with the other model systems. The evaluation plan specifically

focuses on the overall objectives for demonstration, research, and dissemination with specific quantifiable targets, which are reassessed quarterly. Dissemination of NTBRMS materials occurs at many

levels and in a variety of formats: lectures by key personnel, publication in peer reviewed journals, a

quarterly newsletter, and an accessible website available in English and Spanish. The NTBRMS

collaborates with NIDRR-funded Model Systems Knowledge Translation Center (MSKTC) by

participating in its systematic reviews of evidence and facilitating knowledge management by identifying the information needs and barriers among the various stakeholders both at national and local levels.
NIDRR Program Directory FY 2009 - Health and Function 2-39

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

North Texas Traumatic Brain Injury Model System (NT-TBIMS)

The University of Texas Southwestern Medical Center

Department of Neurology

5323 Harry Hines Boulevard

Dallas, TX 75390-9036

caryn.harper@utsouthwestern.edu

www.utsouthwestern.edu/utsw/home/research/neurology/tbi/index.html

Principal Investigator: Ramon R. Diaz-Arrastia, MD, PhD 214/648-6409

Public Contact: Caryn R. Harper, MS, Project Manager 214/648-7613; Fax: 214/648-3143

Project Number: H133A070027

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 07 $430,350; FY 08 $430,350; FY 09 $430,350

Abstract: This project provides comprehensive continuum of care for traumatic brain injury (TBI)

from the time of arrival at the emergency department through the intensive care unit, inpatient and

outpatient rehabilitation, and long-term follow-up after community integration. The project conducts

two local research projects aimed at furthering the goal of developing novel therapies and tailoring

these therapies to individual patients: (1) Phase II randomized, placebo-controlled clinical trial to

determine whether therapy with recombinant human growth hormone (rhGH) during the acute rehabilitation period after TBI results in improved functional outcome; and (2) an observational study using

magnetic resonance imaging (MRI) during the acute rehabilitation period to validate the use of Diffusion Tensor Imaging as a biomarker of diffuse axonal injury. Additionally, the NT-TBIMS works

collaboratively with other TBI-MS Health Module members in a modular project to develop a Brain

Injury Assessment Scale, which allows reliable and validated assessment of sensorimotor impairments

after TBI. The goal is that this scale be as useful in the TBI field as the NIH Stroke Scale has been in

clinical trials in stroke. Finally, the NT-TBIMS provides patient and family education, and dissemination of research findings to the professional community by conducting seminars, presenting the results

at professional meetings, and publishing in professional and lay journals devoted to TBI.
2-40 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Pediatric Burn Injury Rehabilitation Model System

University of Texas Medical Branch

815 Market Street, Route 1220

Galveston, TX 77550

dherndon@utmb.edu; patblakeney@earthlink.net; Jlbailey@utmb.edu

Principal Investigator: David Herndon, MD 409/770-6731

Public Contact: Pat Blakeney, PhD 409/770-6718 or 713/661-1745; 409/770-6731; Fax: 713/661-

2871; 409/770-6919

Project Number: H133A070026

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 07 $362,500; FY 08 $362,500; FY 09 $362,500

Abstract: This program conducts independent and multi-center projects focusing on evaluating and

improving the rehabilitation provided to children with burn injuries, striving to decrease disability and

improve reintegration into society. The model system includes one collaborative project assessing the

efficacy of long term use of propranolol in the treatment of burn injury (in adults and children) with

endpoints of improved survivability, improved cardiovascular condition, greater energy, improved

muscle endurance, improved growth in children, and decreased anxiety. The project also includes a

site-specific study to improve rehabilitative outcomes for children with greater than 40 percent total

body surface area burned by combining an anabolic agent (oxandrolone, Ketoconazole, or propranolol) with a 3-month intensive outpatient rehabilitation program. The supervised exercise program has

shown to be effective in ameliorating effects of the hypermetabolic response. This project assesses the

effectiveness of combining the anabolic agents and the exercise program with the expectation that the

effects will be additive and will improve linear growth, bone mass, muscle strength, lean body mass,

physical function, and general well-being. The last study, also site specific, is a continuation from the

previous funding cycle. It focuses on Acute Stress Disorder (ASD) and Post Traumatic Stress Disorder

(PTSD), a problem that impairs the well-being of burn patients. The study follows children with ASD

to access the relationship of the two disorders and to elucidate a history of the development of PTSD.
NIDRR Program Directory FY 2009 - Health and Function 2-41

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

The Texas Traumatic Brain Injury Model System of TIRR

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Avenue

Houston, TX 77030

mark.sherer@memorialhermann.org

www.memorialhermann.org/locations/tirr/forhealthprofessionals/content .aspx?id=1162

Principal Investigator: Mark Sherer, PhD

Public Contact: 713/799-7007

Project Number: H133A070043

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 07 $430,350; FY 08 $430,350; FY 09 $430,350

Abstract: The Texas TBI Model System of TIRR conducts a program of research, dissemination

activities, and clinical care designed to address social relationships and to improve outcomes for

persons with traumatic brain injury (TBI). Research activities include: (1) contributions to the TBI

Model Systems National Database, (2) a collaborative, multi-center, research module project on sexuality after TBI, and (3) a local project on social communication difficulties after TBI. A collaborative

project on sexuality determines the frequency, type, and severity of changes in sexual functioning after

TBI. As part of this project, researchers conduct the first randomized, clinical trial of an intervention to

increase satisfaction with sexual functioning and comfort level in discussing sexual issues for persons

with TBI and their partners. A local project on social communication conducts a randomized clinical

trial of an intervention to improve social communication skills and social integration for persons with

TBI, with the largest sample size of any similar study and one of only two randomized controlled trials

conducted in this area for over 20 years.
2-42 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Virginia

Virginia Commonwealth Traumatic Brain Injury Model System

Virginia Commonwealth University

Department of Physical Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0452

jhmarwit@vcu.edu

www.tbi.pmr.vcu.edu

Principal Investigator: Jeffrey S. Kreutzer, PhD 804/828-9055

Public Contact: Jennifer Marwitz 804/828-3704; Fax: 804/828-2378

Project Number: H133A070036

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 07 $426,720; FY 08 $426,720; FY 09 $426,720

Abstract: This project utilizes rigorous scientific methods to examine the benefits of intervention for

survivors of traumatic brain injury (TBI) and their families before and after inpatient rehabilitation

discharge. Traumatic Brain Injury Model Systems (TBIMS) and other researchers have expended

considerable energy delineating outcomes. For example, researchers have thoroughly documented

problems after injury, including memory disturbance, impaired self-awareness, executive skills dysfunction, slowness, visual dysfunction, poor motor coordination, and behavioral disorders. Recent

studies have identified a high prevalence of depression, with many survivors reporting feelings of

hopelessness, diminished self-esteem, and social isolation. Brain injury also affects the family system;

family members commonly describe emotional distress, lack of respite, financial stress, and lack of

community support. Projects at the Model System focus on both survivors and families. One study is a

randomized controlled trial to examine the efficacy of a structured approach to the treatment of acute

cognitive and neurobehavioral problems. A second study is a randomized controlled trial to examine

the benefits of an intervention program for family crisis and support.
NIDRR Program Directory FY 2009 - Health and Function 2-43

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

University of Washington Burn Model System

University of Washington

Department of Surgery, Division of Plastic Surgery

Harborview Medical Center

325 Ninth Avenue

Box 359796

Seattle, WA 98104

engrav@u.washington.edu

depts.washington.edu/uwnidrr/

Principal Investigator: Loren H. Engrav, MD

Public Contact: 206/731-3209; Fax: 206/731-3656

Project Number: H133A020103

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000; FY 03 $300,000; FY 04 $300,000; FY 05 $300,000; FY 06

$300,000; FY 07 (No-cost extension through 9/30/2008); FY 08 (No-cost extension through 12/31/

2009)

Abstract: This model system conducts five research projects: (1) A New Approach to the Etiology of

Hypertrophic Scarring develops an increased understanding of hypertrophic scarring. (2) Effect of

Virtual Reality on Active Range-of-Motion During Physical Therapy uses distraction via immersive

virtual reality as an adjunctive non-pharmacologic analgesic. This study tests the hypothesis that virtual

reality allows patients to tolerate greater stretching during physical therapy compared to no distraction,

and that in spite of achieving greater range-of-motion, patients still experience lower pain levels while

in virtual reality. (3) Determination of Reasons for Distress in Burn-Injured Adults identifies reasons

behind a burn survivor’s distress at various time-points after hospital discharge. (4) Barriers for Return

to Work identifies specific barriers to return to work for burn survivors. (5) Acute Stress Disorder

Among Burn Survivors evaluates the effectiveness of cognitive-behavioral therapy, relative to a nondirective, supportive therapy control group, and a national comparison sample in reducing the prevalence of posttraumatic stress disorder diagnosis and symptom severity. Projects 4 and 5 are collaborative. In addition, this project participates in the national database.
2-44 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

The Effect of Scheduled Telephone Intervention on Outcomes After

Traumatic Brain Injury (TBI)

University of Washington

Department of Rehabilitation Medicine

Box 356490, BB-953 Health Sciences

Seattle, WA 98195

krbell@u.washington.edu

depts.washington.edu/rehab/tbi

Principal Investigator: Kathleen R. Bell, MD

Public Contact: 206/685-0935; Fax: 206/685-3244

Project Number: H133A040004

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $600,000; FY 05 $600,000; FY 06 $600,000; FY 07 $600,000; FY 08

$600,000

Abstract: This project evaluates the effect of scheduled telephone intervention (STI) on functional and

health outcomes, at weeks 1-2, 4, 8, and 12, and months 5, 7, and 9 on functional level, health and

emotional status, community integration, and perceived quality of well-being over 1 year after traumatic brain injury (TBI). This a low-cost, easily-implemented intervention is trialed in three states.

Timely intervention to identify problems after TBI, to teach patients and their families coping techniques within their own communities and support their independent decision-making, may effectively

decrease the need for expensive and often inaccessible services and may improve the quality of life for

survivors of TBI. Researchers are evaluating the effect of additional STI at months 15, 18, and 21 on

the same variables and employment at 2 years after TBI. Research examines whether the effects of

such intervention are similar in multiple sites over a wide geographic area. It also examines the differential impact of the intervention in demographic subgroups, with particular attention to minority versus

non-minority racial and ethnic populations.
NIDRR Program Directory FY 2009 - Health and Function 2-45

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

Controlled Trial of Venlafaxine XR for Depression After SCI: A

Multisite Study

University of Washington

Department of Rehabilitation Medicine

Harborview Medical Center

325 9th Avenue

Seattle, WA 98104

chb@u.washington.edu

sci.washington.edu

Principal Investigator: Charles H. Bombardier, PhD

Public Contact: Christian Buhagia 206/897-4731; Fax: 206/897-4790

Project Number: H133A060107

Start Date: January 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $2,198,213; FY 07 $899,981; FY 08 $899,982; FY 09 $899,974

Abstract: This project is a multisite, randomized, double-blind, placebo controlled trial of venlafaxine

XR (Effexor XR) in 168 adults with spinal cord injury (SCI) and major depressive disorder (MDD)

who are 18-65 years old and one or more years post injury. The purpose of the study is to examine the

efficacy and tolerability of venlafaxine XR as a treatment for MDD. The primary outcome is the

percent of responders (those who report at least a 50% reduction in depression severity from baseline

to the end of treatment) in the venlafaxine XR versus placebo control group using intent-to-treat

analysis. Secondary outcomes include changes in pain, health related quality of life, and participation.

A successful clinical trial could lead to more aggressive identification and treatment of MDD as well as

improved health and quality of life in this important population. This is a collaborative project with the

Northwest Regional Model Spinal Cord Injury System.
2-46 NIDRR Program Directory FY 2009 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

University of Washington Burn Model System

University of Washington

Department of Surgery, Division of Plastic Surgery, Department of Rehabilitation Medicine

Harborview Medical Center

325 Ninth Avenue; Box 359796

Seattle, WA 98104

engrav@u.washington.edu

depts.washington.edu/uwnidrr

Principal Investigator: Loren H. Engrav, MD; Peter C. Esselman, MD

Public Contact: 206/731-3209; Fax: 206/731-3656

Project Number: H133A070047

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 07 $362,458; FY 08 $362,459; FY 09 $362,453

Abstract: The University of Washington Burn Model System includes one multi-site, collaborative

project, and two site-specific projects. Project 1: Psychological and Social Needs of Long Term Survivors of Major Burn Injury is a collaborative study (lead center Baltimore) to identify the needs of

persons 5 and 10 years after injury. Project 2 (Site-Specific): Expanded Delivery Model for Burn

Rehabilitation incorporates a novel intervention, an “expanded care provider”, who enables clinicians

to “reach out” to individuals with burn injury and for them to “reach in” to care providers whenever

care is needed, rather than on a rigid schedule to determine if this improves burn rehabilitation outcomes. In a randomized trial, Group 1 receives standard outpatient clinic-based rehabilitation. Group 2

has an additional care provider who uses multiple modalities to manage the multifaceted sequelae of

thermal injury. Outcomes are assessed using an individualized Goal Attainment Scale and the validated

Burn Specific Health Scale. Project 3 (Site Specific): Identification of the Pathways to Scarring utilizes

bioinformatics tools to identify gene expression pathways associated with hypertrophic scarring. In

addition, we contribute long-term follow-up data to the national database maintained at the University

of Colorado in Denver.
NIDRR Program Directory FY 2009 - Health and Function 2-47

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

University of Washington Traumatic Brain Injury Model System

University of Washington

Department of Rehabilitation Medicine

Box 356490, BB-953 Health Sciences

Seattle, WA 98195

krbell@u.washington.edu

depts.washington.edu/rehab/tbi

4:Principal Investigator: Kathleen R. Bell, MD

Public Contact: 206/685-0935; Fax: 206/685-3244

Project Number: H133A070032

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 07 $430,349; FY 08 $430,348; FY 09 $430,346

Abstract: University of Washington’s Traumatic Brain Injury Model System (UWTBIMS) provides a

comprehensive, integrated continuum of medical, surgical and rehabilitation services to persons with

acute and chronic traumatic brain injury (TBI). This project conducts two site-specific projects. The

first is a randomized controlled intervention study evaluating the effect of a structured, telephone-based

mentoring program for caregivers focusing on self-management skills. This study builds upon previous

experiences with telephone counseling for both people with traumatic brain injury and multiple sclerosis. This research is particularly important because caregivers are so crucial to the successful rehabilitation and community re-integration of persons with TBI and the literature on successful interventions

for this population is so sparse. The use of a telephone-based program allows researchers to reach

those (especially in rural regions) who lack ready access to knowledgeable advice, behavior change

support, and specialty care sufficient to maintain the health of their significant other and themselves.

The second project utilizes a large and rich database to predict a number of important long-term outcomes. The modular project studies the natural history of headache under conditions of usual care

during the first year after TBI. This project characterizes the course and nature of headache, a common

but poorly studied consequence of TBI. It examines the impact of headache on outcome and its potential modifiers, describes patient treatment preferences, and lays the foundation for a multi-site clinical

trial.
2-48 NIDRR Program Directory FY 2009 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Alabama

UAB Model Spinal Cord Injury Care System

University of Alabama/Birmingham

Spain Rehabilitation Center

619 - 19th Street South SRC 529

Birmingham, AL 35249-7330

mott@uab.edu

main.uab.edu/show.asp?durki=10712

Principal Investigator: Amie B. Jackson, MD 205/934-3330

Public Contact: Pamela K. Mott, Director, Research Services 205/934-3283 (V); 205/934-4691

(TTY); Fax: 205/975-4642

Project Number: H133N060021

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $474,471; FY 07 $474,471; FY 08 $474,471; FY 09 $474,417

Abstract: The University of Alabama at Birmingham provides rehabilitation services specifically

designed to meet the special needs of individuals with spinal cord injury (SCI) through its

multidisciplinary, comprehensive Spinal Cord Injury Care System (UAB-SCICS). The UAB-SCICS

spans the clinical continuum from emergency services through rehabilitation and community re-entry.

The System’s research includes one collaborative research module and two in-house research projects,

all of which ultimately aim at improving the health and function of its constituents. The collaborative

research module involves the validation of an outcome measure for functional recovery. One in-house

research project involves the assessment of the predictive value of key parts of the neurological exam

for return of bladder function; the second is an investigation of the effect of nicotine on different types

of SCI pain. The project continues to benefit from the active involvement of persons with SCI in the

design and execution of the proposed activities. Project results are disseminated via a variety of accessible formats and venues for both professionals and persons with SCI and their families. A detailed

plan of operation ensures timely completion of project goals and tasks. Finally, an evaluation plan has

been designed to assess the quality and timeliness of project outcomes and dissemination, as well as

short and long term impacts of project activities. Activities of the UAB-SCICS reflect an active partnership both within the components of UAB’s health system and between UAB, the Lakeshore

Foundation, and the Birmingham VA Medical Center. The project continues as a participant in data

collection activities for the National Spinal Cord Injury Statistical Center.
NIDRR Program Directory FY 2009 - Health and Function 2-49

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Colorado

The Rocky Mountain Regional Spinal Injury System

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

susie@craighospital.org

www.craighospital.org/Research/SCIMain.asp

Principal Investigator: Daniel P. Lammertse, MD; Susan Charlifue, PhD; 303/789-8220

Public Contact: Susan Charlifue, PhD 303/789-8306 (V); 303/789-8575 (TTY); Fax: 303/789-8441

Project Number: H133N060005

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $489,000; FY 07 $489,000; FY 08 $489,000; FY 09 $489,000

Abstract: The Rocky Mountain Regional Spinal Injury System (RMRSIS) goals are to: (1) implement

a program of research focusing on the immediate and long-term health, function, and community

integration and participation of people with spinal cord injury (SCI); (2) improve its existing lifetime

system of care for people with SCI; and (3) continue exemplary participation in the National SCI

Database. A site-specific study determines if high vs. low tidal volumes are more effective in achieving

ventilator weaning for individuals with high level tetraplegia, using a randomized clinical trial design.

A collaborative research module study involves the development of a reliable, valid measurement tool

to assess community participation. RMRSIS includes two Level I trauma centers with specialized acute

neurotrauma care facilities (St. Anthony Hospital and Swedish Medical Center) and the rehabilitation

and lifetime follow-up services of Craig Hospital.
2-50 NIDRR Program Directory FY 2009 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

District of Columbia

National Capital Spinal Cord Injury Model System

National Rehabilitation Hospital

MedStar Research Institute

102 Irving Street, NW

Washington, DC 20010

www.sci-health.org; www.ncscims.org

Principal Investigator: Suzanne L. Groah, MD 202/877-1196

Public Contact: Donal Lauderdale, MSE 202/877-1425; Fax: 202/726-7521

Project Number: H133N060028

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $449,417; FY 07 $449,417; FY 08 $449,417; FY 09 $449,417

Abstract: The National Capital Spinal Cord Injury Model System (NCSCIMS) serves Washington,

DC and the nation. By focusing on the frequent and costly complication of pressure ulcers (PU), the

NCSCIMS leverages two unique strengths: an existing Rehabilitation Research and Training Center

on spinal cord injury (SCI) that focuses on reduction of secondary conditions, and the population of

Washington, DC, which is predominantly composed of underserved individuals. The Center includes

two site-specific and one modular project and describes a system of care that meets SCIMS priorities:

Site Specific Project 1 is a Practice-Based Evidence (PBE) project specifically focused on PU prevention for all individuals with SCI and/or disease (SCI/D) during the acute and rehabilitative phases of

care (to evolve to the community in later phases). The PBE approach allows a detailed examination of

the effects of methods, modalities, and therapies utilized in rehabilitation to prevent PUs, which are

often based on evidence-based medicine, but in reality may not be extrapolated to the broader population with SCI/D. In this project, researchers aim to utilize a PBE approach to augment evidence-based

practice while addressing a critical secondary complication for individuals with SCI. Site Specific

Project 2 is an SCI Navigator pilot project that combines elements of Peer Mentoring and Patient

Navigation to decrease the occurrence of PUs once the individual has returned to the community. In

this project, an SCI Navigator assists people with newly-acquired SCI in the transition from inpatient

rehabilitation to the community, within the framework of an, at times, dysfunctional healthcare system.

The NCSCIMS works with the Model System at the University of Pittsburg to explore Assistive

Technology for Mobility (ATM). In this project, researchers investigate the degree to which inadequate

wheelchair technology is the factor preventing people with SCI from doing more, work to understand

the impact of changes in wheelchair reimbursement, and fully explore the issue of disparity in ATM

prescription.
NIDRR Program Directory FY 2009 - Health and Function 2-51

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Georgia

Georgia Regional Spinal Cord Injury Care System

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road Northwest

Atlanta, GA 30309-1465

lesley_hudson@shepherd.org

www.shepherd.org

Principal Investigator: David F. Apple, Jr., MD; Lesley M. Hudson; 404/350-7353

Public Contact: Lesley M. Hudson 404/350-7591; Fax: 404/355-1826

Project Number: H133N060009

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $474,417; FY 07 $474,417; FY 08 $474,417; FY 09 $474,417

Abstract: The Georgia Regional Spinal Cord Injury Care System admits approximately 200 individuals annually with acute onset paralysis secondary to spinal cord injury (SCI), and collects post-discharge data on 600 individuals each year. Its patient population comes primarily from Georgia, the rest

of the Southeast, and the Eastern Seaboard. The continuum of care begins at injury and continues

through transport, assessment, acute care, rehabilitation, emotional adjustment, community reintegration, and lifetime follow-up. The project continues a long record of comprehensive and timely collection of data on subjects who meet the inclusion criteria in three categories: inpatient hospitalization;

longitudinal collection at 1, 5, 10, 15, 20, and 25 years post-injury; and registry. In addition to continued model system research, the project conducts two site specific research projects: (1) Psychological

Status During Inpatient Rehabilitation and One Year After Onset: Stress, Coping, and Expectation

Hope for Recovery; (2) Development and Validation of a Clinical Measure of Wheelchair Seat Cushion Degradation. The project also manages a collaborative data collection research module entitled

Impact of SCI on Labor Market Participation.
2-52 NIDRR Program Directory FY 2009 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Illinois

Midwest Regional Spinal Cord Injury Care System (MRSCIS)

Rehabilitation Institute of Chicago

345 East Superior Street, Room 1146

Chicago, IL 60611

www.ric.org/research/centers/MidwestRegionalSpinalCordInjuryCareSy stem/MRSCICS.aspx

Principal Investigator: David Chen, MD

Public Contact: 312/238-0764

Project Number: H133N060014

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $484,000; FY 07 $484,000; FY 08 $484,000; FY 09 $482,162

Abstract: The Spinal Cord Injury Rehabilitation Program at the Rehabilitation Institute of Chicago

and the Acute Spinal Cord Injury Program at Northwestern Memorial Hospital demonstrate the ongoing, comprehensive, multidisciplinary services that are provided to individuals with spinal cord injury

(SCI) which allow them to optimize their rehabilitation outcomes and enhance their ability to return to

productive, independent living in the community. In order to contribute to the improvement of outcomes for persons with SCI, the System conducts two site-specific research projects: (1) Development

of Low-Cost Devices to Increase Delivery of Intensive Treadmill Training, and (2) Disparities in

Access to and Outcomes of Rehabilitation Care for Medicare and Medicaid Beneficiaries with Spinal

Cord Injury. In addition, the project includes collaboration on one research project, Assistive Technology for Mobility (ATM) Module. MRSCICS has the capacity to enroll 140 individuals from culturally

diverse backgrounds with new spinal cord injuries annually into the Spinal Cord Injury Model Systems

database, and collect follow-up data on individuals enrolled between 1973 and 2000.
NIDRR Program Directory FY 2009 - Health and Function 2-53

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Massachusetts

The New England Regional Spinal Cord Injury Center

Boston University Medical Center

Department of Rehabilitation Medicine

Preston F-511

732 Harrison Avenues

Boston, MA 02118-2393

jane.wierbicky@bmc.org

www.bmc.org/spinalcordinjurycenter/research.htm

Principal Investigator: Steve Williams, MD

Public Contact: Jane Wierbicky; Bethlyn Houlihan; 617/638-7316 (Wierbicky); 617/638-7380

(Houlihan); Fax: 617/638-7303

Project Number: H133N060024

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $464,417; FY 07 $464,417; FY 08 $464,417; FY 09 $464,417

Abstract: The New England Regional Spinal Cord Injury Center (NERSCIC), based at Boston

Medical Center (BMC), uses a network of rehabilitation hospitals (including Gaylord Hospital,

Wallingford, CT), partners, and affiliates to develop a regional capacity to disseminate materials in

such a way that they will be utilized both by consumers with spinal cord injury (SCI) and their families, and health care professionals, with particular attention to minorities and underserved groups.

NERSCIC’s site-specific research project involves designing an improved outcome instrument in SCI

research. This project applies contemporary measurement methods (CATS) to initiate a major transformation in the outcome assessment technology used to assess activity limitation frequently monitored in

SCI research. Once the SCI-CAT has been developed using data collected front major field study, a

demonstration of the SCI-CAT evaluates its respondent burden, acceptability to patients and clinicians,

as well as its breadth, precision, sensitivity to change, and validity with inpatients and outpatients with

SCI who are receiving care from NERSCIC. Comparisons are made between the FIM and SCI-CAT

over a 6-month follow-up period. Additionally, this site-specific project will be integrated with the

NeuroQoL collaborative module, in order to expand and improve both projects and to avoid developing competing computer adaptive testing instruments. This project is now referred to as the QOL/SCICAT Combined Project. Lastly, NERSCIC is a participating site in the SCI Collaborative Participation

Module, led by Gale Whiteneck at Craig Hospital, to address the importance of participation given the

current absence of a standard acceptable measure of participation. This collaborative SCI module

identifies the best existing measure of participation or combines the best items from existing measures

of participation to form a new and improved tool with better psychometric properties validated in the

SCI Model Systems to ensure broad acceptability in future SCI outcomes research, and to allow for

meaningful testing of clinical interventions.
2-54 NIDRR Program Directory FY 2009 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Michigan

University of Michigan Model Spinal Cord Injury Care System

University of Michigan

Department of Physical Medicine and Rehabilitation

300 North Ingalls, Room NI2A09

Ann Arbor, MI 48109-5491

model.sci@umich.edu

www.med.umich.edu/pmr/modelsci/

Principal Investigator: Denise G. Tate, PhD, ABPP, FACRM

Public Contact: Martin Forchheimer, MPP, Project Manager 734/763-0971; Fax: 734/936-5492

Project Number: H133N060032

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $457,417; FY 07 $457,417; FY 08 $457,417; FY 09 $457,417

Abstract: The overall purpose of this project is to provide comprehensive rehabilitation and community participation services and to generate new knowledge through research, development, and demonstration designed to improve outcomes for persons with spinal cord injury (SCI). A site-specific research study is conducted in partnership with faculty from the University of Michigan Depression

Center, Department of Psychiatry, and the Molecular and Behavioral Neurosciences Institute. This

study is a randomized clinical trial study designed to evaluate the efficacy of a pharmacological agent,

Venlafaxine HCI also known as Effexor XR, as a preventive agent for reducing depression among

persons with SCI. This clinical trial addresses a major need in the field as there are no randomized

clinical trials currently available on the effectiveness of antidepressants in persons with SCI. In this

study, the drug’s effects on pain are also assessed. An outcome of this study is the formulation of

recommendations for antidepressant medication use in SCI and implications for clinical practice

guidelines. The project continues to operate an efficient data collection system, facilitating research and

contributions to the National SCI Database.
NIDRR Program Directory FY 2009 - Health and Function 2-55

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

New Jersey

Northern New Jersey Spinal Cord Injury System

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052-1499

dtulsky@kesslerfoundation.net

www.kmrrec.org/nnjscis

Principal Investigator: David S. Tulsky, PhD

Public Contact: 973/243-6849; 973/243-6916; Fax: 973/243-3527

Project Number: H133N060022

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $457,417; FY 07 $457,417; FY 08 $457,417; FY 09 $457,417

Abstract: The Northern New Jersey Spinal Cord Injury System (NNJSCIS) provides a comprehensive continuum of state-of-the-art care for persons with spinal cord injury (SCI) and their significant

others from time of injury through long-term follow-up in the community and conducts spinal cord

research, including clinical research and the analysis of standardized data. NNJSCIS conducts both a

site-specific research study and a collaborative module. These studies contribute to evidence-based

rehabilitation interventions and clinical and practice guidelines that improve the lives of individuals

with SCI and consist of the following: An innovative rehabilitation intervention utilizing technology to

prevent respiratory disease in persons with SCI, now the leading cause of death and the third leading

cause of hospitalizations in this population; a collaborative module that adapts, develops, and validates

an innovative and promising outcome system for use in SCI intervention research; and the NNJSCIS

coordinates with the NIDRR-funded Model Systems Knowledge Translation Center to provide scientific results and information for dissemination to clinical and consumer audiences. This project is a

cooperative effort of the Kessler Medical Rehabilitation Research and Education Corporation

(KMRREC), the Kessler Institute for Rehabilitation (KIR), the University of Medicine and Dentistry

of New Jersey - The New Jersey Medical School (UMDNJ-NJMS), and UMDNJ-University Hospital.
2-56 NIDRR Program Directory FY 2009 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

New York

Mount Sinai Spinal Cord Injury Model System

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

One Gustave L. Levy Place, Box 1240

New York, NY 10029-6574

marcel.dijkers@mssm.edu

www.mssm.edu/rehab/spinal

Principal Investigator:i: Kristian T. Ragnarsson, MD

Public Contact: Marcel Dijkers, PhD 212/659-8587; Fax: 212/348-5901

Project Number: H133N060027

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $452,541; FY 07 $452,541; FY 08 $452,541; FY 09 $452,541

Abstract: The purpose of the Mount Sinai Spinal Cord Injury Model System (MS-SCI-MS) is to (1)

demonstrate and evaluate a multidisciplinary system of rehabilitation care for persons with spinal cord

injury (SCI) in the New York City metropolitan area, including innovative programs for community

integration; (2) contribute longitudinal data to the SCI National Database; (3) create and evaluate SCI

quality of life assessment and participation assessment measures, and collect information on the labor

force and economic impacts of SCI; and (4) evaluate the treatment of neuropathic pain using modifiedrelease morphine. There are three major components of the MS-SCI-MS: (1) comprehensive clinical

care, (2) research (site-specific, module projects and contributions to the national database); and (3)

dissemination, education, and training. The comprehensive clinical program consists of the following

components: (1) The NYC Emergency Medical Service (NYC-EMS), which ensures the early and

safe extrication of individuals with SCI from the site of injury; (2) acute medical/surgical care at

Elmhurst Hospital Center or at Mount Sinai Hospital (MSH), both of which provide state-of-the-art

emergency and medical/surgical services; and (3) comprehensive inpatient medical rehabilitation

services on the 25-bed, CARF-accredited SCI inpatient rehabilitation unit of MSH. The program

stresses interdisciplinary care, and employs a primary team model to enhance coordination among

caregivers. The research program of MS-SCI-MS is designed to advance the understanding of SCI and

its consequences, and to develop better methods of treatment of secondary conditions of SCI, especially pain. The site-specific project studies modified-release formulation of morphine sulfate for

neuropathic pain after SCI through a randomized, double-blind crossover trial of modified-release

morphine and placebo for patients with uncontrolled neuropathic pain of three types. In addition, three

module projects are executed in collaboration with SCI model systems elsewhere. Dissemination,

education, and training for individuals with SCI, their families, students, and health professionals,

constitute the third component of the MS-SCI-MS, and include publications in scientific journals,

presentations at national and local meetings, publication of a newsletter for consumers, expanded webbased information, a variety of educational and training programs, including an SCI medicine fellowship, and training of physical medicine and rehabilitation residents from various residency programs.
NIDRR Program Directory FY 2009 - Health and Function 2-57

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Ohio

Northeast Ohio Regional Spinal Cord Injury System

MetroHealth System

Department of Physical Medicine and Rehabilitation

2500 MetroHealth Drive

Cleveland, OH 44109

mroach@metrohealth.org

rehab.metrohealth.org/norscis

Principal Investigator: Gregory A. Nemunaitis, MD 216/778-5514

Public Contact: Mary Jo Roach 216/778-8781; Fax: 216/778-8782

Project Number: H133N060017

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $449,417; FY 07 $449,417; FY 08 $449,417; FY 09 $449,417

Abstract: The Northeast Ohio Regional Spinal Cord Injury System (NORSCIS) at MetroHealth

Rehabilitation Institute of Ohio in collaboration with Case Western Reserve University and the Cleveland FES Center conducts research to further develop the effectiveness of an innovative Model Spinal

Cord Injury Care System and to demonstrate how the application of advanced assistive technology can

benefit persons with disabilities. Efficiency and effectiveness of care (and research potential) are

enhanced as all components of the continuum of care (from trauma/emergency care to acute medical/

surgical treatment, inpatient and outpatient rehabilitation, and community support services) are all

available on the NORSCIS campus. A site-specific project studies advances in functional electrical

stimulation (FES) technology to document improvements in function, health, and wellness. An innovative focus on trunk muscle stimulation targets specific clinical problems, including seated stability and

mobility, reachable workspace, and pulmonary function. A collaborative research project with UPMCSCI, is directed at testing and collecting the data needed to understand the impact of coverage changes

and to fully explore the issue of disparity in assistive technology for mobility prescription. A collaborative project with Craig Hospital involves the development of a reliable, valid measurement tool to

assess community participation. The goal of these hypothesis-driven research and demonstration

projects is to develop and measure the effectiveness of new intervention strategies at both the individual patient level and overall systems of care for persons with spinal cord injury.
2-58 NIDRR Program Directory FY 2009 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Pennsylvania

Regional Spinal Cord Injury Center of the Delaware Valley

Thomas Jefferson University

Regional Spinal Cord Injury Center of the Delaware Valley

132 South 10th Street

375 Main Building

Philadelphia, PA 19107-5244

Mary.Patrick@jefferson.edu

www.spinalcordcenter.org

Principal Investigator: Ralph J. Marino, MD

Public Contact: Mary Patrick, RN 215/955-6579; Fax: 215/955-5152

Project Number: H133N060011

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $464,417; FY 07 $464,417; FY 08 $464,417; FY 09 $464,417

Abstract: The Regional Spinal Cord Injury Center of the Delaware Valley (RSCICDV) provides and

evaluates a comprehensive program of coordinated patient care, education, and research activities for

individuals who have sustained a traumatic spinal cord injury (SCI). Clinical activities are directed at

promoting evidence-based practice to improve outcomes and reduce medical complications in persons

with SCI. Research activities are designed to develop and validate upper and lower extremity outcome

measures for use in clinical trials. Specifically, RSCICDV: (1) contributes to the National Database by

enrolling an estimated 50 new subjects per year into the database and by collecting follow-up data on

previously enrolled subjects; (2) conducts an on-site research project whose focus is to develop and

validate the Capabilities of the Upper Extremity Test (CUE-T), an objective test of arm and hand

functional capabilities needed to conduct clinical trials for neurological recovery in SCI; (3) participate

in a collaborative module on investigating the impact of policy changes on customizability and features

of wheelchairs and investigate distance traveled, time spent active and speed traveled in a wheelchair

and its relationship to wheelchair customizability and features, wheelchair breakdown, and quality of

life; (4) participates in a collaborative module on validation of an outcome measure for motor recovery

in incomplete SCI; and (5) develops educational resources for patients, healthcare providers, and

researchers.
NIDRR Program Directory FY 2009 - Health and Function 2-59

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Pennsylvania

University of Pittsburgh Model Center on Spinal Cord Injury

University of Pittsburgh

UPMC Institute for Rehabilitation & Research

1400 Locust Street Bldg B, Suite 11516

Pittsburgh, PA 15219

greekk@upmc.edu

www.upmc-sci.org; www.rehabmedicine.pitt.edu

Principal Investigator: Michael L. Boninger, MD 412/365-4861

Public Contact: Karen Greenwald, RN 412/232-7949; Fax: 412/232-7535

Project Number: H133N060019

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $449,417; FY 07 $449,417; FY 08 $449,417; FY 09 $449,417

Abstract: The UPMC-SCI continues its research focus on assistive technology (AT) for mobility. Pilot

data collected during the previous funding cycle highlighted disparity in wheelchair prescription.

Individuals from minority groups and people with low socioeconomic status received less and lower

quality equipment. So that interventions can be developed, the project continues and expands this

research to delve into the reasons for disparity. In addition, it investigates the impact of recent Centers

for Medicare and Medicaid Services (CMS) changes for AT reimbursement. These changes will likely

have a critical impact on the AT provided to individuals with spinal cord injury (SCI). Finally, the

project develops a tool to determine how far, how fast, and when people travel in their wheelchairs.

This data is related to the type of wheelchairs used, to the number of wheelchair failures, and to measures of participation. From these findings, researchers determine how the wheelchair prescribed

impacts participation, and if greater use leads to greater failures. This data can be used to push for

improvements in manufacturing and changes in coverage. UPMC-SCI also conducts a randomized,

controlled trial to determine if following the Consortium of Spinal Cord Injury Medicine Guidelines on

Upper Limb Preservation leads to decreased pain. These guidelines are applied to acutely injured

patients who are followed for the first six months after injury. Validation of the guidelines’ effectiveness helps assure that they become the standard of care across the country. SCI care at the University

of Pittsburgh is provided in a multidisciplinary manner with a high level of communication among the

constituent services. The project has fully implemented a system of continuity of treatment that begins

with the emergency response at the scene of injury and continues with comprehensive treatment and

rehabilitation from medical/surgical to acute stage rehabilitation through utilization of assistive technology services and vocational rehabilitation. UPMC-SCI continues to enroll and collect long-term

follow-up data on SCI subjects for the National Spinal Cord Injury Statistical Center.
2-60 NIDRR Program Directory FY 2009 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Texas

Texas Model Spinal Cord Injury System

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Street

Houston, TX 77030-3408

dgraves@bcm.tmc.edu

www.texasmscis.org

Principal Investigator: Daniel Graves, PhD; William Donovan, MD; 713/797-5023

Public Contact: Daniel Graves, PhD 713/797-5946 (V); 713/797-5790 (TTY); Fax: 713/797-5982

Project Number: H133N060003

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $464,417; FY 07 $464,417; FY 08 $464,417; FY 09 $464,417

Abstract: The Texas Model Spinal Cord Injury System (TMSCIS) provides services along the entire

continuum of care for spinal cord injury (SCI) from emergency medical service to long-term follow-up

and management of secondary conditions. The TMSCIS includes a site-specific research project that is

designed to provide high level evidence of the efficacy of a novel treatment to prevent bladder complications. The project is a randomized, double-blind, placebo controlled, parallel groups investigation of

the effects of Botulinum toxin A treatment of detrusor external sphincter dyssynergia (DESD) during

early spinal cord injury. Many patients with SCI develop neurogenic bladder dysfunction associated

with detrusor hyperreflexia and DESD that can lead to long-term complications in up to 50 percent of

patients. These complications include hydronephrosis, vesicoureteral reflux, nephrolithiasis, sepsis,

renal insufficiency or failure, and even death. This investigation is intended to determine if the prevention of DESD in the early phase of recovery can prevent some of these complications. In addition, the

TMSCIS includes a module designed to develop an outcome measure of trunk and postural control to

be utilized in activity-based therapy programs like locomotor training. The outcomes of large scale

clinical trials of locomotor training highlight the need for outcome measures that are designed to

capture changes brought about by translational research that may not have been necessary for more

traditional therapy programs. This scale development project incorporates item response theory methods as well as reliability and validity investigations in a minimum of four model systems.
NIDRR Program Directory FY 2009 - Health and Function 2-61

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Washington

Northwest Regional Spinal Cord Injury System

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98195-6490

scirehab@u.washington.edu

sci.washington.edu

Principal Investigator: Charles H. Bombardier, PhD 206/731-3665

Public Contact: Cynthia Salzman, MHA 206/685-3999; Fax: 206/685-3244

Project Number: H133N060033

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 06 $464,417; FY 07 $464,417; FY 08 $464,417; FY 09 $464,417

Abstract: The University of Washington’s Northwest Regional Spinal Cord Injury System

(NWRSCIS) serves a critical mass of patients with spinal cord injury (SCI) and has all the necessary

disciplines to provide state-of-the-art medical, surgical, and rehabilitation care. One site-specific project

is a randomized controlled intervention study evaluating the effect of proactive, structured, telephonebased counseling and care management on rehospitalization rate and quality of life during the first year

after discharge from acute rehabilitation. This study builds upon successful experiences with telephone

counseling for both people with traumatic brain injury and multiple sclerosis. This research is particularly important because the lifestyle changes and health care behaviors required for successful living

after SCI are tremendously challenging, rates of rehospitalization are high, and many people (especially in rural regions) lack ready access to knowledgeable advice, behavior change support, and

specialty care sufficient to maintain their health. A modular project studies the natural history of major

depression under conditions of usual care during the first year after SCI. This project establishes

reliable and valid means of screening and diagnosing major depression soon after SCI. It examines the

impact of depression on rehabilitation efficiency and compares the effect of standard treatment to

clinical practice guideline level care of depression. This study describes depression treatment preferences among people with SCI and lays the foundation for a multi-site clinical trial. The NWRSCIS

also includes a collaborative, multisite, randomized, double-blind, placebo controlled trial of

venlafaxine XR (Effexor XR) in adults with SCI and major depressive disorder (MDD). The purpose

of the study is to examine the efficacy and tolerability of venlafaxine XR as a treatment for MDD.

NWRSCIS contributes to the national statistics database at the University of Alabama at Birmingham.
2-62 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

A New Measure of Subjective Fatigue in Persons with Traumatic Brain

Injury

Santa Clara Valley Medical Center (SCVMC)

Rehabilitation Research Center

751 South Bascom Avenue

San Jose, CA 95128

Principal Investigator: Jeffrey Englander, MD 408/793-6446

Public Contact: Jerry Wright 408/793-6433; Fax: 408/793-6434

Project Number: H133G080168

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $182,918; FY 09 $170,842

Abstract: This research project addresses the lack of evidence supporting a specific fatigue scale, of

the over 30 that have been used for clinical and/or research purposes, which is psychometrically sound,

efficient, and useful in individuals with traumatic brain injury (TBI) to assess treatment interventions

and the natural history of fatigue following TBI. The primary objective of the project is to evaluate the

internal consistency, concurrent validity, and item/scale structure of a fatigue item pool and to identify

the most psychometrically sound measure of fatigue in individuals post-TBI. To accomplish this goal,

SCVMC has partnered with the Rehabilitation Institute of Michigan (RIM), a TBI Model System from

1987-2007 and a contracted center to continue TBI National Database follow-up. SCVMC and RIM

have the largest number of cases eligible for follow-up in the TBI National Database. The short-term

outcome is to advance knowledge about the measurement of fatigue in individuals with TBI through

creation of a psychometrically valid and useful fatigue assessment measure for individuals with TBI.

The intermediate outcome is that availability of the new scale will lead to improved studies and treatment plans for individuals with TBI who have fatigue.
NIDRR Program Directory FY 2009 - Health and Function 2-63

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Evaluating Dysphagia in Individuals with Spinal Cord Injury:

Assessing Incidence, Associated Factors, and Preventable

Complications

Santa Clara Valley Medical Center (SCVMC)

751 South Bascom Avenue

San Jose, CA 95128

Principal Investigator: Kazuko Shem, MD

Public Contact: Kazuko Shem, MD 408/885-7007; Fax: 408/885-2028

Project Number: H133G080165

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 08 $189,382; FY 09 $196,670

Abstract: Dysphagia is known to occur in a significant number of individuals with spinal cord injury

(SCI) presenting to acute care immediately after the injury and to inpatient rehabilitation. However, the

exact incidence of dysphagia in this population has not been studied prospectively. The primary

objective of this study is to determine the incidence of dysphagia using bedside swallow evaluation

(BSE) and videofluoroscopy swallow study (VFSS) and to determine associated risk factors in individuals with SCI. The secondary objective is to determine if the BSE is an effective screening tool as

compared with the VFSS for individuals with SCI and to determine the sensitivity and specificity of

BSE in individuals with SCI. The third objective is to document the time course for the resolution of

dysphagia post-SCI. To address this research question, individuals with SCI who are positive for

dysphagia following either a BSE or VFSS are administered serial BSE and VFSS until resolution of

dysphagia or discharge from the rehabilitation center.
2-64 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Colorado

Developing a Relevant Instrument to Assess Caregiver Distress and

Benefit in Spinal Cord Injury

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113-2899

susie@craighospital.org

Principal Investigator: Susan Charlifue, PhD

Public Contact: 303/789-8306; Fax: 303/789-8441

Project Number: H133G090013

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 09 $199,999

Abstract: This project employs a combined qualitative and quantitative methodology to develop a

relevant instrument to assess caregiver distress and benefit in spinal cord injury (SCI). The project uses

a focus group methodology to identify areas of concern for family members providing assistance to a

loved one with SCI. Detailed qualitative analysis of the focus group transcripts is used to identify

themes and concepts that may be operationalized into questions for a new instrument to assess

caregiver distress and benefit in SCI. The instrument is pilot tested with 250 family SCI caregivers.

Items for a final instrument are selected following factor analysis and Rasch analysis. The lived experience of SCI caregiving, as expressed by the caregivers themselves, helps identify what factors are

associated with positive or negative experiences for SCI family caregivers. From this rich contextual

information, a new measure to assess distress and benefit in SCI caregiving may be developed. Led by

Craig Hospital in Englewood, Colorado, the project is a collaborative research effort with three other

prominent SCI rehabilitation facilities: University of Alabama at Birmingham, Santa Clara Valley

Medical Center in San Jose, California, and the Kessler Medical Rehabilitation Research & Education

Center/Kessler Foundation in West Orange, New Jersey.
NIDRR Program Directory FY 2009 - Health and Function 2-65

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Florida

Investigating the Effects of Snoezelen in Children Recovering from

Severe Brain Injury

University of Miami

Miller School of Medicine

1611 NW Twelfth Avenue, RTC-215

Miami, FL 33136-1094

ghotz@med.miami.edu

Principal Investigator: Gillian A. Hotz, PhD

Public Contact: 305/243-4004; Fax: 305/243-4006

Project Number: H133G070119

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 07 $197,907; FY 08 $196,697; FY 09 $198,370

Abstract: This research study examines a novel therapeutic approach referred to as Snoezelen or

controlled multisensory therapy for children with severe traumatic brain injury (TBI). The Snoezelen

approach is based on a theoretical framework of using a controlled multisensory environment which

promotes stimulation of the primary senses which include auditory, visual, olfactory, tactile, and

gustatory systems which are impaired in the early stages of recovery. There is evidence that Snoezelen

has been shown to find a balance between relaxation and activity or changing arousal within the

framework of a safe, controlled, adapted environment. The purpose of this study is to investigate the

effects of Snoezelen therapy on physiological, cognitive, and behavioral changes in children recovering from severe TBI. Seventy-two subjects from 5-18 years of age recovering from severe TBI are

studied in a prospective randomized controlled trial. The treatment group that receives up to 20

Snoezelen treatment sessions is compared to a control group that receives up to 20 playroom sessions,

with both groups receiving a standard comprehensive neurorehabilitation program in an inpatient

pediatric rehabilitation unit. Specific physiological, cognitive, and behavioral outcome measures are

collected and evaluated at baseline, and pre- and post-Snoezelen and playroom treatment sessions.
2-66 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Florida

Exercise Treatment of Obesity-Related Secondary Conditions in Adults

with Paraplegia

University of Miami

Miller School of Medicine

1095 Northwest 14th (R48)

Miami, FL 33136

Principal Investigator: Mark S. Nash, PhD 305/243-3628

Public Contact: Fax: 305/243-3913

Project Number: H133G080150

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $199,738; FY 09 $199,922

Abstract: This project investigates the effects of physical activity with or without a nutrient supplement known to increase body lean mass on adults with chronic paraplegia who are at risk for clusters

of obesity and obesity-related secondary complications. Qualified subjects perform six months of

circuit resistance training with half of the participants randomized to receive a whey protein supplement immediately before and immediately after each training session. The immediate post-exercise

administration of whey protein is reported to increase body lean (muscle) mass, whose loss after spinal

cord injury (SCI) is thought to decrease fat utilization and hasten body fat accretion. Outcomes measured include: (1) the effects of training and supplement on cardiopulmonary endurance and strength, a

global disease risk score, health related quality of life as assessed by the SF-36 instrument validated for

use in persons with SCI; and (2) participant perceptions of exercise benefits studied before and after

training by a scientist-stakeholder with SCI. Data examining the personal and societal barriers to

exercise participation after SCI is collected through a web-based form. This project improves the

understanding of risks for obesity and obesity-related secondary complications. The results are analyzed and will improve the understanding of risks for obesity and obesity-related secondary complications.
NIDRR Program Directory FY 2009 - Health and Function 2-67

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

Biopsychosocial Factors that Predict TBI Post-Acute Rehabilitation

Outcomes

Shepherd Center, Inc.

2020 Peachtree Road, NW

Atlanta, GA 30309-1465

ron_seel@shepherd.org

Principal Investigator: Ronald T. Seel, PhD

Public Contact: 404/367-1240

Project Number: H133G070171

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 07 $192,500; FY 08 $194,973; FY 09 $195,411

Abstract: This project develops models using biopsychosocial factors assessed during the initial days

of traumatic brain injury (TBI) post-acute rehabilitation to predict good, fair, and poor post-acute

rehabilitation discharge outcomes. Empirically derived biopsychosocial models improve understanding

of TBI recovery, identify patients at risk for poor outcomes, inform individualized treatment planning,

and increase the overall efficiency and efficacy of post-acute rehabilitation services. Clinical measures

of motor and cognitive functioning are analyzed, and five experimental measures are administered to

assess potential psychosocial and environmental risk factors for clients with TBI. The primary goals

are to produce probabilistic and tree-based models of biopsychosocial factors that predict good, fair, or

poor TBI post-acute rehabilitation outcomes with regard to: (1) physical and cognitive improvement;

(2) independent living (no supervision required); and (3) community participation. Primary dissemination efforts include at least two peer-reviewed manuscripts that describe predictive models for clinical

use, and development of an automated post-acute rehabilitation admission assessment protocol, made

available for downloading from the Shepherd Center website. The long-term goal is to design and test

interventions for treatable predictors of post-acute rehabilitation outcomes and establish evidence-based

guidelines.
2-68 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

Evaluating the Effects of Activity-Based Therapy for Individuals with

Chronic Spinal Cord Injury

Shepherd Center, Inc.

2020 Peachtree Road Northwest

Atlanta, GA 30309

Principal Investigator: Michael L. Jones, PhD 404/350-7595

Public Contact: 404/350-7595; Fax: 404/350-7596

Project Number: H133G080031

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 08 $200,000; FY 09 $200,000

Abstract: This project evaluates the effects of an activity-based therapeutic exercise program for

individuals with chronic spinal cord injury (SCI) using Beyond Therapy—a program of state-of-the-art

therapeutic exercise technology. Project goals include: (1) completing a randomized, experimentalcontrol group comparison examining the effects of participation in activity-based therapy on neurological functioning, independence in activities of daily living, and community participation; (2) conducting

further between-group and within-subject analyses to determine variations in outcomes as a function of

level of injury and ASIA classification; (3) identifying factors associated with continued compliance

with a self-directed maintenance program designed to sustain any gains in neurological functioning

achieved from participation in activity-based therapy; and (4) examining the relationship between level

of compliance with the maintenance program and preservation of gains achieved over a 12-month

period. Research results are used to develop activity-based exercises for individuals with SCI that can

be implemented in community-based fitness centers. Additionally, the project develops a training and

technical assistance program to assist community fitness centers in implementing activity-based therapy

programs.
NIDRR Program Directory FY 2009 - Health and Function 2-69

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Enhanced Motor Recovery Using Serotonergic Agents

Rehabilitation Institute of Chicago

345 East Superior Street, Suite 1406

Chicago, IL 60611-4496

g-hornby@northwestern.edu

Principal Investigator: T. George Hornby, PhD, PT

Public Contact: 312/238-1397

Project Number: H133G060124

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 06 $142,710; FY 07 $146,280; FY 08 $145,648; FY 09 (No-cost extension

through 10/31/2010)

Abstract: The purpose of this project is to identify changes in voluntary and reflex behaviors, with an

emphasis on walking ability, in individuals with stroke following specific pharmacological and physical interventions, with the potential to optimize walking recovery during intensive rehabilitation. This

project focuses on improving independent walking ability in individuals with chronic hemiparesis poststroke. A substantial body of literature demonstrates the effectiveness of body-weight supported

treadmill training post-stroke, although the improvements in walking ability may be limited. The

project’s goal is to enhance the benefits of training by increasing neural excitability and potential

plasticity by application of serotonergic agents. The approach has two objectives: (1) demonstrate that

serotonergic agents can modulate reflex and voluntary motor activity with acute and chronic selective

serotonin reuptake inhibitors administration, and (2) accelerate motor performance and walking recovery using combined pharmacological and physical interventions as opposed to either intervention

alone.
2-70 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Augmenting Language Therapy for Aphasia: A Randomized DoubleBlind Placebo-Controlled Trial of Levodopa in Combination with

Speech-Language Therapy

Rehabilitation Institute Research Corporation

Center for Aphasia Research

345 East Superior Street, Room 1353A

Chicago, IL 60611

lcherney@ric.org

Principal Investigator: Leora R. Cherney, PhD

Public Contact: 312/238-1117; Fax: 312/238-2208

Project Number: H133G070074

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 07 $199,843; FY 08 $199,772; FY 09 $199,465

Abstract: This randomized, double-blind, placebo controlled clinical trial evaluates the effect of the

pharmacologic agent, levodopa, in combination with speech-language treatment, on the language

outcome of patients with chronic, nonfluent aphasia. There is preliminary evidence that increased

levels of dopamine, in combination with language treatment, may improve the language deficits of

aphasia following stroke. Most studies have investigated the adjunctive effects of bromocriptine, a

dopamine agonist that acts on post-synaptic dopamine receptors, changing the tonic state of dopamine

neurons. However, new evidence is suggesting that levodopa, a precursor to dopamine, may be preferred since it has the potential to increase the presynaptic availability of dopamine, thereby enhancing

phasic dopamine signals which are important for learning enhancement. Accordingly, the specific aims

of this clinical trial are to assess whether: (1) levodopa in combination with speech-language therapy

improves language performance; (2) levodopa in combination with speech-language therapy improves

language performance more than speech-language therapy alone; and (3) improvements in language

performance resulting from combined levodopa and speech language therapy are maintained over time

to a greater extent than improvements resulting from speech-language therapy alone. The intervention,

which serves as the behavioral treatment platform on which to assess the adjunctive effects of

levodopa, is administered via computer and involves repeated choral reading of sentences. Subjects

receive five hours of the speech-language therapy intervention weekly plus the levodopa or placebo for

six weeks. The primary outcome measure is the change in the Aphasia Quotient (AQ) score on the

Western Aphasia Battery from pre-treatment to post-treatment. Other language, cognitive, and communication measures are collected pre- and post-treatment and at six weeks after completion of treatment.

ng:
NIDRR Program Directory FY 2009 - Health and Function 2-71

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Effectiveness of a Teleconference Fatigue Management Program for

People with Multiple Sclerosis

University of Illinois at Chicago

Department of Occupational Therapy

1919 West Taylor Street, MC 811

Chicago, IL 60304

marciaf@uic.edu

Principal Investigator: Marcia Finlayson, PhD

Public Contact: 312/996-4603; Fax: 312/413-0256

Project Number: H133G070006

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 07 $143,836; FY 08 $142,688; FY 09 $112,550

Abstract: This project tests the effectiveness and efficacy of a teleconference energy conservation

education program for people with multiple sclerosis (MS). The project is guided by self-efficacy

theory and builds on existing pilot work. The program is delivered by teleconference by a licensed

occupational therapist. Participants are provided with a telephone and headset, and a program manual.

On the designated days, participants call a toll-free phone number and participate in an educational

group session facilitated by the therapist. A total of six one-hour weekly sessions use the program

materials developed through the pilot study. Measures of the primary and secondary outcomes are

administered over the telephone by a research assistant before and after the program, at three months,

and at six months. By collecting data at these points and having a wait-list control group, the project is

able to test whether: (1) individuals in the immediate intervention group achieve better outcomes than

individuals in the wait-list control group; (2) the program leads to significant reductions in fatigue

impact and fatigue severity, and improved quality of life; and (3) improvements in the outcomes can be

maintained over six months. Analyses involve t-tests and mixed effects regression models. The primary

goals of the project are to reduce the impact of fatigue on participants’ everyday lives, reduce fatigue

severity, and improve quality of life. Secondary goals are to increase self-efficacy for managing fatigue

and increase the number of energy conservation strategies used.
2-72 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Noninvasive Examination of ALS Using Surface EMG

Rehabilitation Institute of Chicago

Sensory Motor Performance Program (SMPP)

345 East Superior Street, Room 1406

Chicago, IL 60611-2654

p-zhou@northwestern.edu

www.smpp.northwestern.edu/

Principal Investigator: Ping Zhou, PhD

Public Contact: 312/238-1365; Fax: 312/238-2208

Project Number: H133G090093

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 09 $188,537

Abstract: This project develops a robust technique for noninvasive motor unit discrimination using the

surface electromyogram (EMG), and then, to utilize the technique to supplement, and potentially

replace in certain cases, the routine needle EMG examination of amyotrophic lateral sclerosis (ALS).

There are two planned goals for the proposed study. The first goal is to develop and test noninvasive

surface EMG unitary decomposition methods. This includes quality controls by validating and refining

the developed methods using both computational and experimental approaches. The second goal is to

perform a surface EMG examination of the pathological changes in ALS patients, mainly at the motor

unit level, using these newly developed noninvasive methods. The strategies utilized in this project lie

in both surface EMG recording and signal processing methods. Development is based on two-dimensional, high density electrode arrays for surface EMG recording, which represent the most recent

advance in surface EMG electrode design. Taking advantage of the spatial information and multichannel recording of the electrode arrays, the project uses the most appropriate EMG signal processing

methods to extract single motor unit activities from the surface EMG. These methods include linear

and nonlinear spatial filtering, two-dimensional motor unit action potential template matching, pattern

recognition, and state-of-the-art blind source separation techniques. This includes laboratory-based

studies and repeated testing in ALS clinics. The directly targeted population is patients with ALS,

however these research activities may potentially benefit individuals with other neuromuscular diseases

who may need EMG examination.
NIDRR Program Directory FY 2009 - Health and Function 2-73

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Kansas

Weight Loss by Individuals with Physical Disabilities

University of Kansas

Life Span Institute

10212 South North Lake Avenue

Olathe, KS 66061

msaundrs@ku.edu

Principal Investigator: Muriel D. Saunders, PhD; Amanda Reichard, PhD

Public Contact: 785/864-1618; Fax: 785/864-5323

Project Number: H133G090230

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 09 $199,801

Abstract: This project conducts a randomized trial to evaluate weight loss and weight maintenance

using both sides of the energy balance equation (i.e. energy intake and energy expenditure) in overweight and obese individuals with physical disabilities (PD) who have impaired mobility. Researchers

compare participants who use the modified Stop Light Diet (SLDm) with participants who follow the

National Heart, Lung and Blood Institute (NHLBI) Step 1 Diet (i.e., standard nutrition and intake

recommendations or usual care (UC)). Following a 6-month period of reduced energy intake (weight

loss), both groups are placed on a diet with sufficient energy to maintain weight (i.e., weight maintenance) for an additional 12 months. Both groups are encouraged to participate in a physical activity

program appropriate for their physical abilities throughout the 18 months. Program intervention and

participant acceptance are evaluated through extensive process analysis of quantitative and qualitative

data. The project also tracks and analyzes the health care utilization patterns and secondary health

outcomes of participants in both the SLDm and UC diets using secondary data analysis of Kansas

Medicaid claims data.
2-74 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Sensorimotor Training and Assessment in Adults with Hemiplegic

Cerebral Palsy: The ULTrA Program

University of Michigan

Division of Kinesiology

401 Washtenaw

Ann Arbor, MI 48109-2214

shcb@umich.edu

www.motorcontrol.umich.edu/ultra

Principal Investigator: Susan H. Brown, PhD

Public Contact: 734/763-6755; Fax: 734/936-1925

Project Number: H133G050151

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 05 $148,810; FY 06 $148,221; FY 07 $149,933; FY 08 (No-cost extension

through 11/30/2009)

Abstract: This project implements a eight-week upper limb training and assessment program (ULTrA.

Program) for adults with hemiplegic cerebral palsy (CP), a growing yet neglected segment of the CP

community. This program is home-based but linked to the research laboratory through the Internet.

Prior to and following clinical intervention, a quantitative assessment of upper limb and hand sensorimotor function is made using established motor control techniques. Each participant receives a

computer-based upper limb training unit, including high speed Internet connectivity and a training CD.

A 40-minute, tailored intervention program is performed five days per week. During three of these

training sessions, a student coach assists participants via webcam. During the coaching sessions,

movement time and grasp force data are recorded and uploaded to a central website which also serves

as a resource for consumers and researchers in the area of mobility in CP across the lifespan. Training

in this intervention leads to improved sensorimotor function of the affected limb and improved bilateral

coordination in adults with hemiplegic CP. This Internet-based program, which utilizes virtual coaches,

facilitates adherence to the training program and thus maximizes the benefit of the intervention.
NIDRR Program Directory FY 2009 - Health and Function 2-75

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Adapted Assessment of Speed of Information Processing in Children

with Cerebral Palsy

University of Michigan

Department of Physical Medicine and Rehabilitation

325 East Eisenhower, Suite 100

Ann Arbor, MI 48108

sethaw@umich.edu

www.med.umich.edu/pmr/acal/speed.htm

Principal Investigator: Seth A. Warschausky, PhD

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133G070044

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 07 $199,995; FY 08 $199,996; FY 09 $199,983

Abstract: This project develops an accessible assessment of processing speed that allows sensitive

measurements of cognitive capabilities in children with severe motor and communicative impairments.

The objective is to examine processing speed in children with cerebral palsy by utilizing inspection

time as a measure of speed of visualization. Specific aims are: (1) to examine psychometric properties,

including reliability, concurrent validity, and criterion-related validity of a modified inspection time

task; and (2) to compare the inspection time profiles within and between groups using the traditional

and modified inspection time task procedures. Processing speed is associated with development of

critical cognitive functions including working memory and fluid intelligence, and is sensitive to brain

dysfunction, medication effects, and aging.
2-76 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Pathways to Depression: An Examination of Vulnerability and Stress in

Adults with Spinal Cord Injury

University of Michigan

Department of Physical Medicine and Rehabilitation

300 North Ingalls, Room NI2A09

Ann Arbor, MI 48109-0491

Principal Investigator: Claire Kalpakjian, PhD

Public Contact: 734/763-0971; Fax: 734/936-5492

Project Number: H133G070020

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 07 $199,999; FY 08 $199,913; FY 09 $199,964

Abstract: This project presents and tests a model (Pathways to Depression after Spinal Cord Injury

[SCI]) of vulnerability factors interacting with current stressors (stressful life events and poor social

support) to increase risk of depression and its adverse effects on community participation in adults with

SCI. Depression after SCI is one of the most pervasive psychological conditions, occurring at rates

exceeding the general population, and has the potential to substantially limit independence, compromise health and well-being, and increase risk for suicide. While many studies in the extant literature

have examined injury and situational factors as correlates of depression, very few have examined other

vulnerability factors that precede injury placing certain individuals at higher risk for depression postinjury. A deeper understanding of factors that predispose some individuals to depression after injury

can inform treatment approaches and improve community participation impeded by depression. Using

a cross sectional design and survey methodology (written and telephone interview), the project surveys

400 individuals with SCI about early life experience, psychological and substance abuse history (prior

to injury), current stressful life events and social support, depression, and community participation.

DNA samples are also collected to test for a polymorphism of the serotonin transporter known to

interact with stress to increase risk of depression. Structural equation modeling is used to test the

Pathways model of vulnerability factors.
NIDRR Program Directory FY 2009 - Health and Function 2-77

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Neuroanatomical Correlates of Positive Psychology Among People with

Traumatic Brain Injury: A Biopsychosocial Model

Wayne State University

Department of Physical Medicine and Rehabilitation

261 Mack Avenue, Suite 546

Detroit, MI 48201

Principal Investigator: Robin A. Hanks, PhD

Public Contact: 313/745-9763; Fax: 313/966-7682

Project Number: H133G080064

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $199,078; FY 09 $194,402

Abstract: This project investigates the complex relationships among strengths of character, structurally-imaged estimates of white matter damage in frontal brain regions, psychological resiliency, and

outcomes including satisfaction with life and community integration among people with traumatic

brain injury (TBI). Additionally, this project investigates the extent to which Peterson and Seligman’s

Character Strengths model of recovery from physical illness and trauma holds true for people recovering from TBI during the acute transition phase of adjustment to disability. The psychosocial, cognitive,

and physical characteristics which may influence these relationships are also explored. This project

measures the satisfaction with life (as measured by the Satisfaction with Life Scale) and community

integration (as measured by the Community Integration Measure). Character strengths are evaluated

via two self-report scales. Estimates of structural brain damage are gathered via diffusion tensor imaging in three main areas of the prefrontal cortex: the dorsolateral, orbitofrontal, and ventromedial cortices. Ancillary measures are included in the design in order to elucidate the relationships between

positive psychology constructs and important mediators/moderators of recovery from TBI: neuropsychological status, perceived social support, problem-solving coping style, positive and negative affectivity, and comorbid physical illness.
2-78 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Nebraska

Development of an Intelligently Controlled Assistive Rehabilitation

Elliptical (ICARE) Training System to Promote Walking and Fitness in

Persons with Physical Limitations

Madonna Rehabilitation Hospital

Movement and Neurosciences Center

Institute for Rehabilitation Science and Engineering

5401 South Street

Lincoln, NE 68506

jburnfield@madonna.org

www.madonna.org/research_institute/movement_neurosciences/about _us/index.html

Principal Investigator: Judith Burnfield, PhD, PT

Public Contact: 402/483-9669

Project Number: H133G070209

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 07 $199,524; FY 08 $199,555; FY 09 $198,719

Abstract: The goal of this project is to develop ICARE, an Intelligently Controlled Assistive Rehabilitation Elliptical trainer and therapeutic program to help individuals with physical or mobility disabilities

regain and/or retain their walking ability and physical fitness. Specifically, the project develops, refines,

and field-tests a prototype ICARE trainer. It includes an affordable, intelligent control system that

adapts the movement pattern of the elliptical trainer to the unique physical assistance needs of individuals as they relearn to walk and exercise. The specific objectives of this project which address this goal

are to: (1) identify the best commercially available elliptical trainer to redesign into an ICARE trainer;

(2) develop, pilot test, and refine a prototype ICARE device in a controlled (laboratory) environment to

improve function, features, beneficial therapeutic effects for walking, and equipment durability; and (3)

implement usage of the ICARE system in three free-living environments (an inpatient rehabilitation

center, outpatient neurologic and orthopaedic clinic, and a community-based fitness facility) to evaluate

the capacity of the device to improve walking ability and cardiovascular function of persons with

varied gait dysfunctions and develop a therapeutic intervention program using the device.
NIDRR Program Directory FY 2009 - Health and Function 2-79

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Nebraska

Investigation of Interventions for Sitting Postural Control in Young

Children with Moderate to Severe Cerebral Palsy

University of Nebraska at Omaha

Nebraska Biomechanics Core Facility

6001 Dodge Street

Omaha, NE 68162

nstergiou@mail.unomaha.edu

biomech.unomaha.edu/

Principal Investigator: Nicholas Stergiou, PhD 402/554-3247

Public Contact: Regina Harbourne 402/554-3247; Fax: 402/554-3693

Project Number: H133G080023

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 08 $200,000; FY 09 $200,000

Abstract: This project identifies interventions that improve the quality of life for children with cerebral

palsy (CP). The first intervention focuses on principles of enhancing complexity in movement variability, which has been shown to be effective in improving infant sitting postural control in previous

research. The second intervention uses the paradigm of adding stochastic noise to the support surface

to improve postural responses, a method used successfully in adults with decreased postural control.

This project conducts three experiments: Experiment 1 utilizes nonlinear dynamics techniques to

quantify changes in postural control as measured by the center of pressure time series in sitting; Experiment 2 utilizes the same children as in Experiment 1, but examines functional changes in arm use,

focused attention, and play over time as sitting postural control improves; Experiment 3 examines

changes in self-care, participation, and gross motor function to determine the relationship between

changes in postural control and participation within the child’s environment. These experiments

enhance the ability to provide better methods to treat children with moderate to severe CP; and provide

a better understanding of the development of cognition, function, play, and participation for children

with CP in relation to improved postural control sitting.
2-80 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Jersey

Quality of Life in Traumatic Brain Injury Research and Practice:

Development of the TBI-QOL

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052-1499

dtulsky@kesslerfoundation.net

Principal Investigator: David S. Tulsky, PhD

Public Contact: 973/243-6849; 973/243-6916; Fax: 973/243-3527

Project Number: H133G070138

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 07 $199,830; FY 08 $199,414; FY 09 $199,910

Abstract: The scarcity of quality of life (QOL) measurement tools specific to traumatic brain injury

(TBI) hinders the efforts of TBI intervention researchers, whose goal is to obtain valid and useful data

to evaluate new treatment approaches. The goals of this study are to: (1) develop an instrument for

comprehensively assessing the health-related quality of life (HRQOL) of persons with TBI, regardless

of the severity of their condition; (2) enable comparisons of HRQOL in TBI with HRQOL in other

neurologic conditions by integrating this instrument with the Neuro-QOL project; and (3) investigate

and develop strategies for determining the HRQOL of individuals with even the most severe TBI, thus

ensuring that these individuals will be represented in initiatives that use this instrument, rather than

excluded as is often the case due to the difficulty of assessing such persons.
NIDRR Program Directory FY 2009 - Health and Function 2-81

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Jersey

Improving New Learning and Memory in TBI: Applying fMRI to

Measure Outcome

Kessler Foundation

300 Executive Drive, Suite 10

West Orange, NJ 07052

nchiaravalloti@kesslerfoundation.net

www.kesslerfoundation.org

Principal Investigator: Nancy D. Chiaravalloti, PhD

Public Contact: 973/530-3640; Fax: 973/736-7880

Project Number: H133G090078

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 09 $198,744

Abstract: Impairments in new learning and memory are among the most common deficits in persons

with traumatic brain injury (TBI). This project examines the impact of a targeted behavioral intervention on functional cerebral activity using functional Magnetic Resonance Imaging (fMRI). Research

determines if improvement in learning and memory is associated with particular patterns of functional,

cerebral activity on fMRI. Participants receive pre and post-treatment fMRI evaluations, which are

correlated with behavioral performance assessed concurrently. Additionally, participants complete a

six-month post-treatment fMRI to examine the maintenance of treatment effects over time, as well as

the impact of “booster sessions” to facilitate the maintenance of treatment effects from a neuro-functional perspective.
2-82 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

North Carolina

Improving Cervical and Breast Cancer Screening for Women with

Intellectual Disabilities

University of North Carolina

325 Pittsboro Street, Room 563-I; CB 3550

Chapel Hill, NC 27599-3550

parish@unc.edu

Principal Investigator: Susan Parish, PhD

Public Contact: 919/962-6434; Fax: 919/962-7557

Project Number: H133G090124

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 09 $200,000

Abstract: This project addresses the need for training and support for women with intellectual disabilities to understand the importance of cervical and breast cancer screening, to assert their needs and

concerns to their health care providers, and to manage their anxiety related to their health care needs.

The Women Be Healthy intervention is designed to empower women with intellectual disabilities to

improve their self-determination and knowledge related to preventive health care practices including

cervical and breast cancer screening, and to enable these women to become active and equal partners

in their health care. This project longitudinally tests the intervention by examining its impact on four

outcomes: (a) women’s self-determination related to preventive health care; (b) women’s knowledge of

their bodies and cervical and breast cancer screening; (c) women’s anxiety related to preventive screenings; and (d) actual receipt of cervical and breast cancer screening. The mixed-methods study includes

quantitative and qualitative components that complement each other to provide rich data. Quantitative

methods consist of a longitudinal experimental design with multiple baseline measures; qualitative

methods include focus groups. The experimental component uses a rigorous randomized control trial to

obtain information about the efficacy and effectiveness of Women Be Healthy. Equally important,

focus groups are conducted with women with intellectual disabilities who are enrolled in Women Be

Healthy; the qualitative data obtained will enable a better understanding of the viewpoints and experiences of these women regarding preventive health care.
NIDRR Program Directory FY 2009 - Health and Function 2-83

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

RISE - Reflection, Insight, and Self-Empowerment: Development of a

Cognitive Behavioral Group Therapy Intervention for Women with

Physical Activity Disabilities who Experience Depression

Oregon Health and Science University

School of Nursing

3455 SW US Veterans Road, SN-637

Portland, OR 97239-2941

phillide@ohsu.edu

Principal Investigator: Dena Hassouneh, PhD

Public Contact: 503/494-2714; Fax: 503/494-3878

Project Number: H133G070214

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 07 $198,701; FY 08 $199,926; FY 09 $187,385

Abstract: Rates of depression and suicide in women with physical disabilities (WPD) are up to five

times higher than in the general population. Despite this disparity, few intervention studies that address

the specific needs of this population are available. This project uses an existing cognitive behavioral

therapy (CBT) intervention that has demonstrated effectiveness in reducing depressive symptoms in

women without disabilities as a starting point to co-create an intervention that addresses the specific

needs of WPD. The co-creation process occurs in the context of a partnership between the investigators, WPD in the community, and community-based organizations including Oregon Centers for

Independent Living (CILs). The specific aims of this project are to: (1) Develop a cognitive behavioral

group therapy intervention to address the specific needs of WPD who experience depressive symptoms; and (2) pilot-test the intervention to preliminarily evaluate its efficacy using a using a wait list

control design. Phase I of the project involves development of the curriculum based on the following

information sources: four focus groups conducted with WPD, review of empiric sources, community

meetings, and feedback from our community advisors and consultants. Phase II pilot-tests the intervention using both quantitative and qualitative methods to assess its efficacy. A long-term goal of the

proposed project is to increase the capacity of CILs and other community-based organizations across

the country to offer a relevant, effective, accessible, and affordable intervention to help WPD with

depression overcome this debilitating secondary condition.
2-84 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Treatment Components and Active Ingredients in a Scheduled

Telephone Intervention for Traumatic Brain Injury

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

60 East Township Line Road

Elkins Park, PA 19027

thart@einstein.edu

www.einstein.edu/facilities/mossrehab/index.html

Principal Investigator: Tessa Hart, PhD

Public Contact: 215/663-6153; Fax: 215/663-6113

Project Number: H133G070143

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $199,880; FY 08 $199,844; FY 09 $197,373

Abstract: This project studies the treatment components and active ingredients of an intervention for

post-acute, moderate and severe traumatic brain injury (TBI) known as Scheduled Telephone Intervention (STI). The STI was designed to help meet the multiple, evolving needs of people with TBI and

their families following rehabilitation hospital discharge, and consists of telephone calls placed by a

specially trained counselor at scheduled, gradually increasing intervals (seven calls in the first year post

TBI). Using a theoretically motivated model of candidate active ingredients in three classes: treatment

elements common to many interpersonal interventions (e.g., therapeutic alliance), treatment elements

related to goal self-management/ executive function theories, and modifier variables such as total dose

of treatment, the project analyzes the treatment components of the STI by coding archived, audiotaped

treatment sessions (calls) from 175 participants in the treatment arm of the multicenter randomized

controlled trial on the STI. This project: (1) develops an objective, reliable scoring system for measuring these treatment components; (2) characterizes relationships among pre-treatment participant characteristics (e.g., level of disability) and the treatment components delivered during a one-year course of

STI; (3) examines the longitudinal trends in treatment components during one year of treatment; and

(4) estimates the “activity” of various ingredients by examining the relationships among treatment

components and one-year outcomes, accounting for the direct effects of baseline status on both treatment process and outcomes.
NIDRR Program Directory FY 2009 - Health and Function 2-85

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Zolpidem and Restoration of Consciousness: An Exploration of the

Mechanism of Action

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

60 East Township Line Road

Elkins Park, PA 19027

Principal Investigator: John Whyte, MD, PhD

Public Contact: 215/663-6872; Fax: 215/663-6113

Project Number: H133G080066

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 08 $199,553; FY 09 $197,540

Abstract: Severe brain damage due to traumatic or non-traumatic causes frequently results in unconsciousness (coma) and, in a minority of cases, may lead to prolonged or permanent disorders of consciousness (DOCs) including the vegetative and minimally conscious states. This project assesses the

responses of patients with DOCs to single doses of zolpidem and placebo in a double blind crossover

design, initially with structured caregiver reporting. Repeat studies with quantitative assessment by a

trained clinician follow for those who are believed to respond to the drug. Those classified as definite

drug responders, along with a matched sample of non-responders, are studied intensively with a

combination of structural and functional neuroimaging and electrophysiologic studies in an exploratory

fashion to develop preliminary hypotheses about the neural substrate required for responding to

zolpidem. Project activities include recruiting of a national sample of individuals with DOCs to participate in a consent-based, HIPAA compliant research registry, which will facilitate this and future

studies. This study helps to define the potential size of the population who may benefit from zolpidem

administration, encourages those who do benefit to seek ongoing clinical management, and allows

formulation of hypotheses about the mechanism of drug response that can be tested definitively in

subsequent research, making use of interested registry participants.
2-86 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Understanding the Determinants of Motor Ability, Self-Care, and Play

of Young Children with Cerebral Palsy

Drexel University

Physical Therapy and Rehabilitation Sciences

245 North 15th Street, Mail Stop 502

Philadelphia, PA 19102

lisa.chiarello@drexel.edu

Principal Investigator: Lisa A. Chiarello, PT, PhD

Public Contact: 215/762-8805; Fax: 215/762-3886

Project Number: H133G060254

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $149,981; FY 07 $149,927; FY 08 $149,359; FY 09 (No cost extension

through 4/30/2010)

Abstract: The specific purpose of this project is to validate a multivariate model of determinants of

change in basic motor ability and engagement in self-care and play of young children with cerebral

palsy. The objective is to identify the child characteristics, family ecology, and rehabilitation and

community services that optimize outcomes. The project targets a subset of children with cerebral palsy

who as adults will not walk independently in the community and will require physical assistance for

self-care at times throughout the day. Information on the factors that enhance outcomes for these

children is particularly needed because families expend considerable time and resources to meet their

children’s health, education, and development needs. Knowledge of determinants of children’s change

in basic motor abilities and engagement in self-care and play will enable health care professionals and

educators to provide evidence-based interventions, support families, and optimize community resources.
NIDRR Program Directory FY 2009 - Health and Function 2-87

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Virtual Reality Assessment and Treatment of Hemispatial Neglect

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

1200 West Tabor Road, Korman 213

Philadelphia, PA 19141

lbuxbaum@einstein.edu

Principal Investigator: Laurel Buxbaum, PsyD

Public Contact: 215/456-5953; Fax: 215/456-5926

Project Number: H133G060086

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 06 $149,593; FY 07 $149,819; FY 08 $149,910; FY 09 (No-cost extension

through 11/30/2010)

Abstract: The goal of this project is to address previous limitations in the assessment and treatment of

neglect through the use of virtual reality (VR) technology. Hemispatial neglect, a failure to attend to

and/or act on objects on the side of space opposite a brain lesion, is a common and persistent consequence of stroke, occurring in approximately 45 percent of the nearly 2 million Americans who have

suffered a right hemisphere cerebral vascular accident. The neglect syndrome is associated with impairments in a wide range of activities of daily living, with significant consequences for functional independence. This project capitalizes on a number of VR’s useful assets, including simulation of the

spatial and cognitive demands of real world environments, quantification of aspects of performance,

ready control of the experimental task, and ease of administration. The major aims are: (1) to develop

and validate a VR navigation task measuring lateralized attention (the VRLAT), an extension of a

sensitive VR task developed previously; (2) to perform clinical trials assessing the short-term efficacy

of two VR-based treatments for neglect that induce different types of mismatch between proprioceptive

and visual information, using the VRLAT as one of the measures of treatment response; and (3) to

perform clinical trails of the two treatments focused on generalization and maintenance of gains with a

longer course of treatment.
2-88 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

A Longitudinal Study of Risk for Hospitalization, Pressure Ulcers, and

Subsequent Injuries After Spinal Cord Injury

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

77 President Street, Suite 117

 PO Box 250700

Charleston, SC 29425

cokerj@musc.edu

www.musc.edu/chp/sciorg/

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-5649

Project Number: H133G050165

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 05 $149,992; FY 06 $149,995; FY 07 $149,997; FY 08 (No-cost extension

through 11/30/2009); FY 09 (No-cost extension through 11/30/2010)

Abstract: The onset of spinal cord injury (SCI) increases the risk for the development of a number of

secondary conditions that may adversely impact an individual’s life and even result in early mortality.

Research has yet to sufficiently identify the factors that lead to secondary conditions, as most studies

are limited by not using theoretical or empirical models in selecting variables, generally focusing on a

single condition, or by investigating only a limited number of risk factors. The purpose of this project is

to perform a longitudinal study to identify protective and risk factors associated with the onset of

multiple types of adverse health events among a large sample of individuals with SCI. In 1997-8,

researchers collected prospective data on 1,391 participants who included a substantial number of

women (n = 362) and racial/ethnic minorities (n = 359). Risk and protective predictors were selected

based on a general empirical risk model. Predictor variables were first measured over a 10-month

period in 1997-1998, including: (a) biographical status, (b) injury status, (c) psychological status, (d)

environmental factors, and (e) health behaviors. Several health outcomes measures were also used.

During the follow-up, the current project administers multiple outcome measures, with a focus on

adverse events — pressure ulcers, subsequent injuries, hospitalizations, and treatments. To date, we

have collected and entered data from 1549 participants, 835 of whom participated in the original study

and an additional 714 that were added in conjunction with funding from another agency (29 new

responses are being processed). These measures focus on adverse health events including hospitalizations, onset of pressure ulcers, and subsequent injuries. Structural equation modeling is performed to

develop risk models for each outcome. A consumer advisory committee has met to review instrumentation and will continue to meet to make recommendations regarding all components of the project. The

ultimate study goal is to enhance the lives of people with SCI by identifying the risk and protective

factors associated with adverse health events to serve as a foundation for prevention efforts by rehabilitation and public health professionals.
NIDRR Program Directory FY 2009 - Health and Function 2-89

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

Participation, Subjective Well-Being, Health, and Spinal Cord Injury:

A 35-Year Longitudinal Study

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

77 President Street, Suite 117

PO Box 250700

Charleston, SC 29425

cokerj@musc.edu

www.musc.edu/chp/sciorg/

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact:,: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-5649

Project Number: H133G060126

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $149,954; FY 07 $149,987; FY 08 $149,946; FY 09 (No-cost extension

through 11/30/2010)

Abstract: The purpose of this 35-year longitudinal study is to identify the natural course of changes in

participation, health, and subjective well-being among 5 cohorts of participants with spinal cord injury

(SCI). Data were first collected in 1973 from 256 participants, 78 of whom have participated throughout the study. Using a revolving panel longitudinal design, participants are followed over time with

new participant samples added to counter attrition. To date, there have been a total of 2,208 different

participants over the six times of measurement, including nearly 100 who have lived 40 or more years

with SCI. The proposed study is the seventh stage of data collection and addresses not only the natural

course through analysis of both cross-sectional and multiple longitudinal elements, but also special

issues including quality of life and termination of employment, change in living circumstance to a more

restrictive environment, and the role of environmental factors on stability of health and quality of life.

The project is currently conducting the primary data collection, having previously completed finalization of instrumentation, based on consumer panel recommendations and pilot testing. After conclusion

of the primary data collection, the project utilizes consumer input into the development of recommendations for healthy living with aging for consumers and policy recommendations for rehabilitation

professions and legislators. The consumer panel meets throughout the study, making recommendations

at each stage of activities. At the beginning of the study, they met to review previous findings and the

instrument package in order to eliminate redundant or unimportant measures or recommend additional

constructs, and review the data collection protocol to insure the procedures are consistent with participant needs (e.g., format, instrument length). For the primary data collection, researchers are surveying

the 1,568 respondents from the last follow-up using the Life Situation Questionnaire which has been

used throughout the study and measures biographic and injury factors, activities of daily living, living
2-90 NIDRR Program Directory FY 2009 - Health and Function

circumstances, employment, participation, health, and subjective well-being (life satisfaction and selfreported problems). Additional instruments are being used to measure depressive symptoms, participation, health outcomes, environment, pain, and alcohol history. Additional measures of coping and

social support are included in the current stage of data collection. These represent a combination of

core measures dating back to the first time of measurement in 1973 and newer measures that have been

added regularly since that time to address more diverse issues. Several sets of data analyses are conducted, including sequential designs that combine cross-sectional and longitudinal elements, as there

are essentially several embedded longitudinal designs (i.e., 5, 10, 15, 20, 24, 35 years). The project

identifies policy recommendations at the individual (recommended practices), rehabilitative (programmatic needs), and legislative-federal level (allocation of funds in areas that will promote better outcomes). A consumer guide for healthy aging will be developed and distributed through consumer

recommended sources to insure the findings reach the consumer level.
NIDRR Program Directory FY 2009 - Health and Function 2-91

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

Ambulation and Secondary Complications: Participants with Chronic

Spinal Cord Injury.

Medical University of South Carolina

77 President Street, CHP-C

PO Box 250700

Charleston, SC 29425

cokerj@musc.edu

www.sciandtbiresearch.blogspot.com/

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-7051; Fax: 843/792-5649

Project Number: H133G090059

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 09 $199,986

Abstract: A wave of recent research has identified short-term benefits of gait training for people with

spinal cord injury (SCI); yet, other research suggests there may be unforeseen long-term adverse

consequences of ambulation. Analysis of existing data shows that pain interference and depressive

symptoms were substantially higher among ambulatory participants who were dependent on others for

assistance, even when compared with wheelchair users. This project builds upon this preliminary

research by testing a comprehensive mediational model of the relationships of three classes of

ambulation parameters (reliance on assistive devices and orthoses, reliance on people, functionality)

with two sets of secondary conditions (pain and fatigue). Structural equation modeling is used to test

the mediational model that three ambulation parameters are associated with risk of two chronic secondary conditions, which are in turn are associated with variations in participation, depressive symptoms,

and quality of life. By virtue of identifying the ambulation parameters that are associated with secondary conditions and when ambulation is a counterproductive after SCI, this study guides rehabilitation

professionals and consumers in choosing the most appropriate mobility option (wheelchair or

ambulation) that minimizes secondary conditions, promotes community participation, and enhances

quality of life.
2-92 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Effectiveness of a Group Cognitive-Behavioral Intervention for

Depression after TBI and Factors that Affect Response to Treatment

Memorial Herman

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

2323 South Shepherd, Suite 907

Houston, TX 77019

anclark@bcm.edu; struchen@bcm.tmc.edu

Principal Investigator: Allison Clark, PhD; Margaret Struchen, PhD; 713/630-0519 (Clark); 713/

630-0515 (Struchen)

Public Contact: Allison Clark, PhD 713/630-0519; Fax: 713/630-0529

Project Number: H133G070222

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 07 $197,754; FY 08 $197,899; FY 09 $199,940

Abstract: This project is designed to evaluate the effectiveness of a group cognitive behavioral intervention (CBT group) for treating depressive symptoms in persons with traumatic brain injury (TBI), to

assess the impact of cognitive impairments on an individual’s response to the CBT group, and to assess

the impact of the CBT group on community participation and subjective well-being in persons with

TBI. The initial phase of this study involves utilizing input from consumer and expert advisors to

develop an approach and to adapt materials for use with persons with cognitive impairments. Once

adapted, the intervention is piloted with a group of five individuals with at least mild symptoms of

depression. After the pilot phase, a randomized, attention controlled clinical trial follows. Cognitivebehavioral approaches to treatment of depression have been demonstrated to have effectiveness in

many populations, including a growing body of evidence for effectiveness in persons with other types

of acquired brain injury. Given the inherent structure that such approaches utilize, which may help

minimize cognitive demands, cognitive behavioral therapy would appear well-suited to use with

persons with TBI.
NIDRR Program Directory FY 2009 - Health and Function 2-93

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Washington

Telephone and In-Person Cognitive Behavioral Therapy for Depression

After Traumatic Brain Injury

University of Washington

Department of Psychiatry and Behavioral Sciences

Box 356560

1959 NE Pacific Street

Seattle, WA 98195

fann@u.washington.edu

Principal Investigator: Jesse R. Fann, MD, MPH

Public Contact: 206/685-4280; Fax: 206/221-5414

Project Number: H133G070016

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 07 $199,873; FY 08 $199,981; FY 09 $199,915

Abstract: This project continues previous efforts to establish evidence-based treatments for major

depressive disorder (MDD) in people with traumatic brain injury (TBI). MDD is the most common

psychiatric disorder among TBI survivors and has widespread negative effects on health and functional

outcomes in people with TBI. This three-armed randomized controlled trial compares (1) in-person

cognitive behavioral therapy for depression that is adapted for people with TBI (CBT-TBI) and (2)

telephone-based CBT-TBI to a (3) usual depression care condition (UC). Previous research found that

people with TBI and depression are highly interested in using psychotherapy to treat depression.

Although psychotherapy is widely used in the treatment of general psychological aspects of TBI, solid

evidence for the efficacy of psychotherapy for MDD in this population is absent. While CBT is the

most evidence-based psychotherapy available for MDD, thus far there is only expert opinion to guide

how CBT should be adapted for people with TBI (i.e., to accommodate patients with neurocognitive

and neurobehavioral impairments). Therefore, this study adapts CBT specifically for people with TBI

in a three-arm trial and measures the feasibility, acceptability, and potential effectiveness of this adapted

intervention in both telephone-administered and in-person formats, compared with UC. The long-term

goal of this research is to develop a feasible and effective manualized psychotherapy intervention to

treat major depressive disorder in persons with TBI that is applicable across a wide array of settings.
2-94 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Washington

Natural History of Headache Following Mild Traumatic Brain Injury

University of Washington

Rehabilitation Medicine

1959 NE Pacific Street, Box 356490

Seattle, WA 98195-6490

tbi.washington.edu

Principal Investigator: Jeanne M. Hoffman, PhD; Kathleen R. Bell, MD; Suriyya Dikman, PhD;

206/221-6511

Public Contact: Jeanne M. Hoffman, PhD 206/221-6511; Fax: 206/685-3244

Project Number: H133G090022

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 09 $199,923

Abstract: This purpose of this project is to evaluate headache in those with mild traumatic brain injury

(TBI) with the ultimate goal of developing a clinical trial to treat post-traumatic headache (PTH).

Headache is a common diagnosis after TBI with an estimate of 30-90 percent of those with TBI

developing migrainous or other type of headache, compared to the general population with 4 percent

prevalence. Based on available literature and clinical observations, individuals with mild TBI are

thought to suffer from headaches more frequently compared to those with more severe injuries. This

study leverages existing resources by building upon a study being currently conducted through the TBI

Model System at the University of Washington examining the natural history of headache in moderate

to severe TBI and addresses the problem of headaches in the full spectrum of TBI severity. This

project uses similar assessment tools as in the ongoing TBI Model Systems study to describe the

characteristics of PTH using standardized headache measures and classifications. Additionally, it

identifies predictors of headache and compares acute and chronic headache, as well as examines the

impact of headache on return to work and other outcomes. Assessments occur at injury, and 3, 6 and

12 months after injury. This study, in conjunction with the current TBIMS study, provides a comprehensive description and natural history of PTH available at present.
NIDRR Program Directory FY 2009 - Health and Function 2-95

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Adverse Outcomes Following Inpatient Rehabilitation: Trends and

Reasons

University of Wisconsin/Milwaukee

Department of Occupational Therapy

Enderis Hall 963

PO Box 413

Milwaukee, WI 53201

johnsto@uwm.edu

Principal Investigator: Mark Johnston, PhD

Public Contact: 414/229-3616

Project Number: H133G060218

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 06 $149,129; FY 07 $149,772; FY 08 $149,888; FY 09 No-cost extension

through 10/31/2010

Abstract: Research is needed to develop the knowledgebase and tools necessary to address the

problem of increased rates of mortality and hospitalization following inpatient rehabilitation and to

examine explanations for adverse outcomes. Descriptive analyses are conducted first to describe

important trends in mortality and rehospitalization and to provide a basis for further analyses. Multivariate risk adjustment models – based on impairments, functional level, age, and other patient characteristics in extant databases – are then developed to predict adverse outcomes. These risk adjustment

models provide the necessary basis to distinguish the effects of patient severity and caseload from other

factors that affect adverse outcomes. Researchers then examine and test the effects of important facility

characteristics that may affect rates of adverse outcomes. The primary outcomes to be studied are

mortality and rehospitalization; functional decline is also studied, as it, too, may indicate medical

instability, and all three outcomes may or may not be predicted and affected by the same set of factors.
2-96 NIDRR Program Directory FY 2009 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Conservative and Surgical Clubfoot Treatment: Multi-Center Study

Marquette University

Orthopaedic and Rehabilitation Engineering Center

P.O. Box 1881

Milwaukee, WI 53201-1881

depps@mcw.edu

www.orec.org

www.marquette.edu

Principal Investigator: Peter A. Smith, MD; Gerald F. Harris, PhD, PE; 414/288-0696; 414/288-

0698

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133G060252

Start Date: January 01, 2007

Length: 24 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 06 $150,000; FY 07 $150,000; FY 08 $150,000; FY 09 (No-cost extension

through 12/30/2010)

Abstract: This study is designed to compare the longer-term effects of two methods of clubfoot

treatment: (1) the conservative Ponseti technique of manipulation and casting, and (2) progressive

surgical release. Clubfoot is a congenital foot deformity occurring in 1 in 1,000 births. It is commonly

treated at pediatric orthopaedic hospitals and its incidence has been constant and not expected to

decrease. Treatment is ideally accomplished early in life, within the first year, and is often successful in

accomplishing a satisfactory, plantigrade foot, which will fit in shoes. Little is known, however about

the function of treated clubfeet. This project investigates the longer-term outcome of children with

treated clubfoot deformity using patient-based outcomes, functional instruments, motion analysis,

radiological assessment, and postural stability. The objective is to determine whether functional outcomes, postural stability, and gait analysis characterize overall patient satisfaction and motor performance and to quantify the effects of orthopaedic interventions.
NIDRR Program Directory FY 2009 - Health and Function 2-97

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Utah

Utility Arm – An Upper Limb Prosthesis

Motion Control, Inc.

115 North Wright Brothers Drive

Salt Lake City, UT 84116

harold@utaharm.com

Principal Investigator: Harold H. Sears, PhD

Public Contact: 801/326-3434; Fax: 801/978-0848

Project Number: H133S090131

Start Date: October 01, 2009

Length: 24 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 09 $255,950

Abstract: This project continues to develop the innovative body-powered (BP) upper extremity (UE)

prosthetic system, Utility Arm, which provides substantial improvements in functionality, comfort, and

aesthetics for persons with UE deficiencies at all levels. The Utility Arm system increases independence and work capabilities for users of arm prostheses, with less complexity than a full myoelectric

arm system, and at lower cost. Project goals include: (1) the design and fabrication of high-strength

molded shells for the Utility Arm elbow, retaining the design features of the Utah Arm (enclosed

forearm, forward hinge pin, exoskeletal structure, convenient battery compartment, etc.); (2) maintaining a body-powered elbow lock design of the Utility Arm which has the ability to function as a completely body-powered system; (3) development of the first plastic/composite adult BP terminal device

(TD), the Gripper, featuring tough urethane surfaces for high friction, with no sacrifice in ruggedness,

and at a competitive price; (4) development of rugged Quick Disconnect that is integrated into electric

as well as BP TDs, is highly water/dirt resistant, and allows adjustable friction; (5) development of a

water-resistant battery pack which extends the environments in which a hybrid arm prosthesis may be

used with an electric TD and lock; and (6) improvement of the electronic control improving a wearer’s

control of hand, wrist, and lock when using non-EMG alternative inputs.

Contents

Rehabilitation Engineering Research Centers (RERCs) ........................................................................ 3

Disability and Rehabilitation Research Projects .................................................................................. 26

Field Initiated Projects (FIPs) .............................................................................................................. 30

Small Business Innovation Research (SBIR), Phase I ......................................................................... 57

Small Business Innovation Research (SBIR), Phase II ....................................................................... 72

Technology for Access and Function

With NIDRR's research priorities, technology spans the goals of sustaining health

and function, employment, and participation and community living reflecting the

critical contributions of technology to successful outcomes for persons with

disabilities in all these areas. At the individual level, the primary focus is on assistive

technology devices that enhance the physical, sensory, and cognitive abilities of

people with disabilities and assist them in participating and functioning more

independently in the home, at work, in recreational settings, and at cultural and

community events. At the systems level, the emphasis is on applying technology

research and development in ways that enhance community integration,

independence, productivity, competitiveness, and equal opportunity by mitigating or

eliminating barriers found in large social systems such as public transportation,

telecommunications, IT, and the built environment.

NIDRR Program Directory FY 2009 - Technology for Access and Function 3-3

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

California

Rehabilitation Engineering Research Center: Develop and Evaluate

Technology for Low Vision, Blindness, and Multi-Sensory Loss

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

rerc@ski.org

www.ski.org/Rehab

Principal Investigator: John A. Brabyn, PhD 415/345-2110

Public Contact: Deborah Gilden, PhD 415/345-2000; Fax: 415/345-8455

Project Number: H133E060001

Start Date: August 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $950,000; FY 07 $950,000; FY 08 $950,000; FY 09 $950,000

Abstract: This Center conducts a program of research and development to enhance the independence

of blind, visually impaired, and deaf-blind individuals. Research includes investigation of assessment

methods to guide rehabilitation of infant cortical visual impairment; practical innovations in assessment

and interventions for elders with visual impairments; and development of independent assessment

guidelines for emerging visual prostheses. The Center also conducts research in access to graphical

information for blind, visually impaired, and deaf-blind persons, developing tools for rapid screen

overview, auditory and tactile graph presentation, image classification, and on-demand production of

tactile street maps. To address signage and travel information, the project is investigating information

interfaces for travelers who are blind or visually impaired, and innovative computer vision methods to

find and read existing print signs and labels. To address the rising barriers to accessing visual displays

and appliances for employment and daily living, there is a designer education campaign and development of a universal talking LCD/LED display reader, practical consumer tools, and jobsite adaptations

for employees who are blind or visually impaired. Other projects include development of a newgeneration robotic finger-spelling hand for deaf-blind communication, and pilot investigations of

difficulties in lipreading and sign language reading experienced by those with combined auditory and

visual impairment.
3-4 NIDRR Program Directory FY 2009 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Colorado

Rehabilitation Engineering Research Center for the Advancement of

Cognitive Technologies (RERC-ACT)

University of Colorado

Health Sciences Center

1245 East Colfax, Suite 200

Denver, CO 80218

cathy.bodine@uchsc.edu

www.rerc-act.org

Principal Investigator: Cathy Bodine, PhD

Public Contact: 303/315-1281; Fax: 303/837-1208

Project Number: H133E040019

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 04 $850,000; FY 05 $850,000; FY 06 $850,000; FY 07 $850,000; FY 08

$850,000; FY 09 (No-cost extension through 4/30/2010)

Abstract: The goal of this RERC is to research, develop, evaluate, implement, and disseminate

innovative technologies and approaches that will have a positive impact on the way in which individuals with significant cognitive disabilities function within their communities and workplace. The Center

incorporates: (1) a consumer-driven model for identifying the most significant barriers to independent

living and workforce participation; (2) an approach that is balanced and uses both well-established and

newly emerging technologies in its development projects; (3) a focus both on functional limitations and

specific disabilities; and (4) mutually beneficial partnerships with private industry and public agencies.

Research activities include: needs, knowledge, barriers, and uses of AT by persons with cognitive

disabilities; technology for remote family support for people with cognitive disabilities; influences on

AT use, non-use, and partial and inappropriate use by persons with traumatic brain injury; AT enhancement of written expression for children and adults; needs assessment for creating affordable, contextaware technologies; and technology to promote decision-making skills and self-determination for

students with cognitive disabilities. Development activities include: Design, implementation, and

deployment of context aware technologies for persons with cognitive disabilities residing in community living environments; development of HealthQuest, an Internet-based product that enables individuals with intellectual disabilities to become active participants in their own health care; XML

repository of common tasks; batteryless micropower sensors for context aware technologies; perceptive

animated interfaces for workforce training; and environmentally appropriate behavioral cues for

individuals with TBI.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-5

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Colorado

Rehabilitation Engineering Research Center for Cognitive

Rehabilitation

University of Colorado

Health Sciences Center

601 East 18th Avenue, Suite 130

Denver, CO 80203

cathy.bodine@ucdenver.edu

Principal Investigator: Cathy Bodine, PhD 303/315-1281

Public Contact: 303/315-1281; Fax: 303/837-1208

Project Number: H133E090003

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 09 $949,999

Abstract: This project focuses on the research and development of cognitive technologies for individuals with cognitive disabilities across the life span. Cognitive technologies increase the quality of

life of consumers, their families, and caregivers; expand inclusion in all aspects of life and work; and

increase independence. Focusing on three main areas, this project addresses: (1) development of a

product usability testing facility focusing on rigorous industry-standard product testing protocols for

cognitive assistive technology; (2) development of a core software/sensor platform to support mobile

animated agents used for multiple applications; and (3) development of — currently a critical missing

link for cognitive technology information technology access and technologies. Project activities focus

on the challenges of people with cognitive disabilities in obtaining and maintaining employment, and

succeeding in the workplace. Moreover, this project addresses a number of specific challenges such as

effective non-linear job coaching, coaching for jobs and tasks involving multiple workplace locations,

returning to a task after the many types of interruptions presented in the modern technological workplace, and learning vocabulary for the workplace. Long-term project outcomes include increasing

employment, job longevity, and job satisfaction people with cognitive disabilities.
3-6 NIDRR Program Directory FY 2009 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

District of Columbia

Rehabilitation Engineering Research Center on Hearing Enhancement

Gallaudet University

Department of Hearing, Speech, and Language Sciences

800 Florida Avenue, NE, MTB 116

Washington, DC 20002

RERC.HE@gmail.com

www.hearingresearch.org

Principal Investigator: Matthew H. Bakke, PhD

Public Contact: 202/651-5335; Fax: 202/651-5324

Project Number: H133E080006

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $949,935; FY 09 $949,997

Abstract: This project builds and tests components of an innovative model of aural rehabilitation (AR)

tools, services, and training in order to assure a better match between hearing technologies and individuals in their natural environments. Project goals include: (1) improving assessment, fitting, availability, and use of hearing technologies; (2) increasing the quality, availability, and knowledge of AR

services; (3) training of consumers, service providers, and future researchers, developers, and practitioners; and (4) transferring technology and knowledge to agencies, standards bodies, consumers, and the

professions who influence the communicative effectiveness of those who are deaf or hard of hearing.

Additional component projects are designed to fall into four areas: (1) AR projects improve the assessment and treatment of individuals in need of AR; (2) hearing technology addresses the technology

challenges of real-life use of assistive technologies, hearing aids, and cochlear implants; (3) training

programs provide training of individuals who will become the rehabilitation innovators of the future;

and (4) dissemination and advocacy programs transfer technology and knowledge to agencies, standards bodies, consumers, and hearing professionals.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-7

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center for Wireless Technologies

Georgia Institute of Technology

Virginia C. Crawford Research Institute

Shepherd Center

2020 Peachtree Road, NW

Atlanta, GA 30309

wirelessrerc@shepherd.org

www.wirelessrerc.org

Principal Investigator: Helena Mitchell, PhD

Public Contact: John Morris 404/367-1288; Fax: 404/350-7596

Project Number: H133E060061

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $949,999; FY 07 $949,999; FY 08 $949,998; FY 09 $949,999

Abstract: The mission of this project is to: (1) promote equitable access to and use of wireless technologies by persons with disabilities; and (2) encourage adoption of Universal Design in future generations of wireless technologies. To accomplish these aims, the RERC is organized into three main

project sections: The Research Section is comprised of four research initiatives: Facilitating User

Centered Research is designed to establish a research portal that communicates to industry the needs of

people with disabilities for wireless technologies. Customer-driven Usability Assessment enhances the

usability of future generations of cell phones and other wireless products by developing a methodology

for assessing their usability by representative users with disabilities. Collaborative Policy Approaches

to Promote Equitable Access develops, implements, and evaluates specific policy initiatives related to

accessible wireless technologies and services. Advanced Auditory Interfaces develops, tests, and

disseminates guidelines for the design of advanced auditory interfaces for cell phones and other

handheld electronic devices. The Development Section includes four projects that promote equitable

access to and use of wireless technologies by persons with disabilities through the development of

prototype designs: Alternative Interfaces continues its work on the V2 standards for universal remote

consoles and Real-time Location-based Information Services expands on previous work on the

RERC’s personal captioning system by addressing the needs of patrons with vision or hearing impairments in three different venues: exhibit spaces, airports, and hospitals. Development of Wireless

Emergency Communications and Ensuring Access to Emergency Assistance both focus on the area of

wireless emergency communications for people with disabilities; developing wireless communication

technology to be used by emergency personnel to contact individuals with disabilities, and by people

with disabilities to signal the need for assistance. The Training and Dissemination Section promotes the

synthesis of new knowledge into practice with the RERC’s State of the Science conference and a

number of initiatives designed to educate consumers, providers, and other professionals, including:

university courses, an annual student design competition, conference tutorials, and workshops, all

geared toward access and usability of mobile wireless technologies.
3-8 NIDRR Program Directory FY 2009 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Workplace

Accommodations

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

workrerc@coa.gatech.edu

www.workrerc.org

Principal Investigator: Karen Milchus 404/894-0393

Public Contact: 404/894-1414; 800/726-9119; Fax: 404/894-9320

Project Number: H133E070026

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 07 $949,999; FY 08 $949,999; FY 09 $950,000

Abstract: The Workplace Rehabilitation Engineering and Research Center (RERC) identifies, develops, and promotes new assistive and universally designed technologies that maximize independence

and participation of people with disabilities in the workplace. It focuses on the application of universal

design (UD) concepts to improve the utility of workplace tools and devices for all workers through

research, development, training, and dissemination. Research activities investigate five topics identified

by current RERC research: user needs, longitudinal cost/benefits of accommodations, strategies used

by aging workers, the impact of policy on access to and utilization of accommodations, and the effect

of accommodations on employee participation in the workplace. Several development activities create

and validate new workplace assessment tools for use by practitioners and employees. Other development activities design, prototype, and evaluate new workplace accommodations. Universally designed

workstations and human-computer interfaces are being developed. In addition, the Work RERC

develops technology for workers with identified and unmet accommodation needs, including prompting aids for employees with developmental disabilities and accommodations for employees with

communication disabilities. Finally, Work RERC training activities include both instruction and evaluation of training outcomes and will target VR professionals, workers with disabilities, and students

interested in design and engineering.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-9

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center for Wheeled Mobility in

Everyday Life

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

mobilityrerc@coa.gatech.edu

mobilityrerc.catea.org/

Principal Investigator: Stephen Sprigle, PhD, PT 404/385-4302

Public Contact: 404/894-4960 (V/TTY); Fax: 404/385-9320

Project Number: H133E080003

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $949,998; FY 09 $949,995

Abstract: This project promotes new ways of conceptualizing and understanding wheeled mobility—

focusing on devices and interventions that impact device use and activity performance. This approach

enables as many individuals as possible to actively participate in everyday life. Project goals include

four integrated program areas in research, development, training, and dissemination that utilize a

variety of methodologies and scientific approaches taking research out of the laboratory and putting it

into real-world, everyday environments. Research centers on four activities: R1. Pressure Ulcer Prevention: Susceptibility and Pressure Relief Effectiveness; R2. Effects of Mobility Device and Environmental Facilitators on Activity and Participation; R3. Improved Training to Improve Function which

studies the effect of immediate video feedback on acquisition of advanced wheelchair skills, and the

impact of an innovative wheelchair Tai Chi program on health, activity, and participation; and R4.

Improved Wheelchair Prescription which examines effects of wheelchair type on performance of

elders in public spaces and investigate how well clinicians predict the wheelchair use of their clients.

Development projects address standards and test methods and commercial projects and include: D1.

Development of Standards and Test Methods which develops three wheelchair cushion standards and

a wheelchair test method to accurately measure the mechanical effort required to propel manual wheelchairs; D2. Inventor-Driven Product Development that assists in developing products that have been

conceived by small companies and inventors; and D3. Development of Orphan Technologies, developing devices that have small markets but serve useful needs. Four training projects focus on a variety

of audiences including: T1. Evidence-Based Online Wheelchair Seating and Positioning Course; T2.

Advanced Rehabilitation Research Training; T3. Creating Rehabilitation Engineering and Assistive

Technology Experiences; and T4. State of the Science Conference.
3-10 NIDRR Program Directory FY 2009 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Recreational

Technologies and Exercise Physiology Benefiting Persons with

Disabilities (RERC RecTech)

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Suite 712

Chicago, IL 60608-6904

jrimmer@uic.edu

www.rectech.org

Principal Investigator: James H. Rimmer, PhD

Public Contact: 312/413-9651; Fax: 312/355-4058

Project Number: H133E070029

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 07 $950,000; FY 08 $950,000; FY 09 $950,000

Abstract: This center includes a coordinated set of research, development, capacity building, and

dissemination projects focused on facilitating and promoting healthier, more active lifestyles for people

with disabilities. The key target areas for the research and development projects are improving access

to recreation and exercise venues and equipment, increasing opportunities for participation by people

with disabilities in beneficial exercise, using technology to support greater adherence to regular exercise, and promoting better health and function for people with disabilities through active lifestyles. The

research and development agenda of the RERC provides the context for a growing capacity building

effort targeting not only the next generation of leadership in engineering, research, and clinical practice

but also infusing rehabilitation engineering concepts and principles into the curriculum of related

disciplines. A broad and active dissemination program makes effective use of a non-profit organization

advocating for inclusive recreation and exercise opportunities for people with disabilities: The Inclusive Fitness Coalition (IFC - www.incfit.org) currently has 53 member organizations representing the

recreation and fitness industry, fitness and exercise science professionals, researchers, disability organizations, professional organizations, rehabilitation centers, and others united by a common goal of

furthering inclusive opportunities for people with disabilities to participate in recreation and exercise in

their own communities.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-11

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Robotics and Telemanipulation Machines Assisting

Recovery from Stroke Rehabilitation Engineering Research Center

(MARS-RERC)

Rehabilitation Institute Research Corporation

Sensory Motor Performance Program (SMPP) and the Department of Physical Medicine and

Rehabilitation at Northwestern University

345 East Superior Street, ONT-924

Attn: MARS-RERC Research Administration Chicago

Chicago, IL 60611-2654

medevitt@ric.org; j-patton@northwestern.edu

www.mars-rerc.org

Principal Investigator: W. Zev Rymer, MD, PhD; Jim Patton, PhD; 312/238-3919

Public Contact: Jim Patton, PhD 312/238-1277; Fax: 312/238-7605

Project Number: H133E070013

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 07 $949,775; FY 08 $949,779; FY 09 $949,751

Abstract: Machines Assisting Recovery from Stroke Rehabilitation (MARS-RERC) is a multiinstitutional center designed to evaluate the utility of simple robotic devices for providing rehabilitation

therapy after hemispheric stroke. The broad objective is to develop devices that assist the therapist in

stroke treatments that are rationally based, intensive, and long in duration. Such devices also monitor

progress, and help to improve the functional performance of stroke survivors, with the intent that there

will be a greater likelihood of their return to community and to work. The Center designs and implements a program of research and development, investigating the use of robot devices and related

engineering technologies for better restoration of function in stroke survivors. The focus is largely on

stroke, because this is the most common neurological disorder requiring intensive and prolonged

rehabilitation. Research activities center on the application of new approaches that improve recovery

outcomes of the entire body during either upper extremity reach-and-grasp activities or lower body

locomotion activities. MARS-RERC includes six programs of study: (1) Development of new capabilities of the Lokomat® walking robot; (2) development of hand technology involving reaching; (3)

development of telerehabilitation using an arm gravity-assistance device; (4) research benefits of error

augmentation in relearning after stroke; (5) research benefits of overground walking the KineAssist®

robot; and (6) training initiative on rehabilitation-oriented engineering design. Research training is a

critical component that includes medical students, physician residents in physical medicine, graduate

students in engineering and neuroscience, and allied health clinicians including physical and occupational therapists. There is a separate advanced education and training project dedicated to the design of

robotic devices (Project 6 above) for rehabilitation as part of Northwestern University’s highly successful initiative in engineering design education. MARS-RERC is hosted at the Rehabilitation Institute of

Chicago (RIC) in conjunction with multi-national partners at Northwestern University, University of

Illinois at Chicago, University of California at Irvine, ETH in Zurich, and INAOE, Puebla, Mexico.
3-12 NIDRR Program Directory FY 2009 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center for Prosthetics and

Orthotics

Northwestern University

345 East Superior Street, Room 1441

Chicago, IL 60611

reiu@northwestern.edu

www.feinberg.northwestern.edu/depts/repoc/index.html

Principal Investigator: Steven Gard, PhD; Stefania Fatone, PhD, BPO

Public Contact: 312/238-6500; Fax: 312/238-6510

Project Number: H133E080009

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $949,999; FY 09 $949,999

Abstract: This project improves the quality of life for persons who use prostheses and orthoses

through creative applications of science and engineering to prosthetics and orthotics (P&O) through

seven research projects and five development projects. These projects enhance the ability of prosthesis

and orthosis users to perform activities of daily living and negotiate their daily environment safely and

effectively, engage in their chosen employment/vocation, and improve their health through the safe and

effective use of P&O devices. Increasing understanding about the fundamental biomechanics of

standing, walking, reaching, grasping, and the corresponding utilization of P&O devices for these

activities enable better evaluation and improvement upon current P&O technologies. Research is broad

in scope involving lower-limb prosthetics, lower-limb orthotics, upper-limb prosthetics, analysis of

spinal motion during gait in users of prostheses, and utilization of process and outcome information to

improve P&O care delivery. Additional focus is given to the needs of farmers and ranchers with

amputations. Development projects focus on human locomotion, reaching, grasping, and manipulation;

and providing efficient and cost-effective production of prosthetic components with the goal to assist

P&O clinicians in their daily practices by providing them with new mechanisms, evaluation and

designs tools, and information about prosthetic/orthotic usage.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-13

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Michigan

Rehabilitation Engineering Research Center on Wheelchair

Transportation Safety

University of Michigan

Transportation Research Institute

2901 Baxter Road

Ann Arbor, MI 48109-2150

www.rercwts.org

Principal Investigator: Lawrence W. Schneider, PhD (Michigan); Patricia Karg, MS (Pittsburgh);

Gina Bertocci, PhD (Louisville)

Public Contact: Lawrence W. Schneider, PhD 734/936-1103; Fax: 734/647-3330

Project Number: H133E060064

Start Date: November 01, 2006

Length: 60 months

NIDRR Officer: William V. Schutz, PhD, MSW, MPH

NIDRR Funding: FY 06 $899,753; FY 07 $899,708; FY 08 $899,749; FY 09 $899,751

Abstract: Research conducted by the RERC on Wheelchair Transportation Safety (RERC WTS)

advances the safety, usability, and independence of people who remain seated in their wheelchairs

when traveling in motor vehicles. Research and development projects involve close collaboration with

manufacturers, transit providers, vehicle modifiers, clinicians, and consumers to ensure quick translation of results into meaningful solutions that benefit travelers with mobility disabilities. Projects range

from developing innovative solutions for forward-facing and rear-facing wheelchair passenger stations

in large accessible transit vehicles, to investigating issues of school-bus transportation for children

seated in WC-19 compliant and noncompliant wheelchairs, and to improving frontal- and rear-crash

protection for occupants in private vehicles. Continuing research from previous grants, the RERC

WTS extends the in-depth investigations of adverse events involving wheelchair-seated travelers, but

also conducts a study of the transportation experience of wheelchair users in large public transit vehicles, including the process of entering and exiting the vehicle, accessing the wheelchair station,

securing the wheelchair and restraining the occupant, and traveling to and from destinations. In addition to conducting research and development in six project areas, RERC WTS staff engages in information dissemination, training of future researchers, transferring innovative technology concepts to the

marketplace, developing and revising voluntary industry standards, and convening the second State-ofthe-Science Workshop on Wheelchair Transportation Safety. The RERC is a partnership of the University of Michigan Transportation Research Institute, the University of Pittsburgh, the University of

Louisville, and the University of Colorado.
3-14 NIDRR Program Directory FY 2009 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

New Jersey

Rehabilitation Engineering Research Center on Children with

Orthopedic Disabilities

New Jersey Institute of Technology

323 M. L. King Street

Newark, NJ 07102

foulds@njit.edu

rerc.njit.edu/

Principal Investigator: Richard A. Foulds, PhD

Public Contact: 973/596-3335

Project Number: H133E050011

Start Date: November 01, 2005

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 05 $949,700; FY 06 $949,646; FY 07 $949,266; FY 08 $949,266; FY 09

$949,455

Abstract: This project focuses on research and development assisting children to achieve their full

potential as productive citizens. The work plan includes a roster of projects designed to enhance the

physical skills of these children to be successful in learning, playing, and living independently. This

project includes three research and three development projects, as well as training projects serving the

needs of children, families, students, and professionals. Project selection is driven by the RERC’s

vision of RERCs as a source of innovation and of new technologies designed to address the serious

problems faced by children with disabilities. This project is a collaboration of New Jersey Institute of

Technology, the Children’s Specialized Hospital, and Rutgers University, bringing together two

academic departments of biomedical engineering with the nation’s largest pediatric rehabilitation

hospital.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-15

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering and Research Center (RERC) on Universal

Design and the Built Environment at Buffalo

University at Buffalo

The State University of New York

School of Architecture and Planning

378 Hayes Hall

Buffalo, NY 14214

rercud@ap.buffalo.edu

www.ap.buffalo.edu/idea/rercud.asp

Principal Investigator: Edward Steinfeld, ArchD; Geoff Fernie; 716/829-3485

Public Contact: Danise Levine 716/829-3485, ext. 329; Fax: 716/829-3861

Project Number: H133E050004

Start Date: November 01, 2005

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 05 $949,996; FY 06 $949,994; FY 07 $949,999; FY 08 $949,997; FY 09

$949,993

Abstract: The RERC on Universal Design and the Built Environment (RERC-UD) is engaging the

public and private sectors across four broad domains of the built environment: (1) community infrastructure, (2) public buildings, (3) housing, and (4) products. The RERC-UD generates strategically

important research, development, education, and dissemination deliverables, to advance the fields of

rehabilitation engineering and environmental design. The RERC-UD deliverables integrate universal

design principles within the generally accepted models, methods, and metrics of design and engineering professionals in the building and manufacturing industries. Research projects document the efficacy of existing universally designed environments, and generate critical human factors data essential

to resolving design and engineering problems. Development projects create evidence-based guidelines

to implement universal design concepts within the tools of the design professions, and formulate

methods to evaluate the usability of designs for people with mobility, sensory, and cognitive impairments. The usefulness of the guidelines and evaluation methods are demonstrated by applying them to

the development of innovative products and environments with industry partners. Training activities

include online certificate programs in universal design for design professionals, builders, manufacturers, and consumer advocates; a web portal and site for students and educators; and graduate programs

that train researchers in advanced methods. Dissemination outputs include traditional refereed and trade

publications, an extensive website with downloadable information products and design tools, model

home demonstrations in local communities across the country, and outreach activities with professional, business, and standards development organizations. The RERC-UD’s state-of-the-science

conference includes stakeholders in a plan to elevate universal design to an integral component of the

mainstream design and engineering disciplines.
3-16 NIDRR Program Directory FY 2009 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center on Communication

Enhancement

Duke University

Department of Surgery

Division of Speech Pathology and Audiology

Duke University Medical Center, Box 3888

Durham, NC 27710

aac-rerc@mc.duke.edu

www.aac-rerc.com

Principal Investigator: Frank DeRuyter, PhD 919/684-6271

Public Contact: Kevin Caves, ME, ATP 919/681-9983; Fax: 919/681-9984

Project Number: H133E030018

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,977; FY 04 $949,973; FY 05 $949,974; FY 06 $949,976; FY 07

$949,974; FY 08 (No-cost extension through 10/31/2009); FY 09 (No-cost extenstion through 4/30/

2010)

Abstract: The mission of this RERC is to assist people who use augmentative and alternative communication (AAC) technologies in achieving their goals across environments. The goals and objectives of

the RERC are to advance and promote AAC technologies through the outputs and outcomes of

research and development activities and to support individuals who use, manufacture, and recommend

these technologies in ways they value. Research projects cover the following areas: (1) improving

AAC technology to better support societal roles; (2) enhancing AAC access by reducing cognitive/

linguistic load; and (3) enhancing AAC usability and performance. Projects address issues of literacy,

telework, specialized vocabulary, contextual scenes and intelligent agents, improving interface performance, and monitoring and simulating communication performance. Development activities include:

(1) technology and policy watch; (2) new interfaces; and (3) reducing the cognitive/linguistic burden

on AAC users. Activities address monitoring emerging technologies, standards, and policies; technologies to supplement intelligibility of residual speech, dysarthric speech, and gesture recognition; brain

interface; AAC WebCrawling; and enhancing the role of listeners in AAC interactions.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-17

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center for Communication

Enhancement (AAC-RERC)

Duke University

Department of Surgery

Division of Speech Pathology and Audiology

220 West Main Street

Durham, NC 27705

aac-rerc@mc.duke.edu

www.aac-rerc.com

Principal Investigator: Frank DeRuyter, PhD; David Beukelman, PhD; 919/684-6271

Public Contact: Jessica House 919/681-9983; Fax: 919/681-9984

Project Number: H133E080011

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $949,965; FY 09 $949,991

Abstract: The mission of the AAC-RERC is to assist people who use augmentative and alternative

communication (AAC) technologies in achieving their goals across environments. The goals and

objectives of the AAC-RERC are to advance and promote AAC technologies through the outputs and

outcomes of its research and development activities; and to support individuals who use, manufacture,

and recommend these technologies in ways they value. The project builds on collaborative relationships with researchers and developers both in and outside of the field of AAC and assistive technology, including DynaVox Technologies, the Federal Laboratory Consortium, Department of Navy, and

Research In Motion among others. Research projects include: (1) AAC technologies to reduce cognitive/linguistic load; (2) new interface strategies for AAC technologies; and (3) AAC technologies to

increase usability, acceptance, and learnability. Development activities include: (1) connecting to the

world - AAC access to mainstream technologies; (2) new interface strategies for AAC technologies;

and (3) usability, acceptance, and learnability of AAC technologies.
3-18 NIDRR Program Directory FY 2009 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Telerehabilitation

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

2310 Jane Street, Suite 1300

Pittsburgh, PA 15203

dkeelan@pitt.edu

www.rerctr.pitt.edu

Principal Investigator: David M. Brienza, PhD 412/586-6907

Public Contact: Debby Keelan 412/586-6905; Fax: 412/586-6910

Project Number: H133E040012

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 04 $849,890; FY 05 $849,930; FY 06 $849,922; FY 07 $849,991; FY 08

$849,984

Abstract: The vision of this RERC is to serve people with disabilities by researching and developing

methods, systems, and technologies that support remote delivery of rehabilitation and home health care

services for individuals who have limited local access to comprehensive medical rehabilitation outpatient and community-based services. Research and development activities include: (1)

Telerehabilitation Infrastructure and Architecture: development of an informatics infrastructure and

architecture that builds on existing programs and technologies of the University of Pittsburgh Medical

Center’s e-Health System, supports the RERC’s research and development activities, meets HIPAA

requirements, provides a test-bed for third party telerehabilitation applications, and can be used as a

model for future telerehabilitation infrastructure; (2) Telerehabilitation Clinical Assessment Modeling:

development of a conceptual model for matching consumers with telerehabilitation technology. The

model is user-oriented and driven by consumer experiences regarding satisfaction, simplicity, and

reimbursability of telerehabilitation; (3) Teleassessment for the Promotion of Communication Function

in Children with Disabilities: development of a web-based teleassessment infrastructure that links

therapists and child participants, allowing therapeutic content to be adapted to the child’s individual

progress and abilities; (4) Remote Wheeled Mobility Assessment: determines if individuals with

mobility impairments can obtain appropriate prescriptions for wheeled mobility devices through the use

of a telerehabilitation system based upon information and telecommunications technologies; (5) Behavioral Monitoring and Job Coaching in Vocational Rehabilitation: researches technologies to conduct

remote delivery of rehabilitation services to individuals who have limited access to rehabilitation

services that are necessary to participate in and achieve education and employment outcomes in their

community; and (6) Remote Accessibility Assessment of the Built Environment: determines the

effectiveness of a remote accessibility assessment system in evaluating the built environment of

wheeled mobility device users.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-19

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Spinal Cord Injury

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

2310 Jane Street, Suite 1300

Pittsburgh, PA 15203

dkeelan@pitt.edu

Principal Investigator: David M. Brienza, PhD 412/586-6907

Public Contact: Debby Keelan 412/586-6905; Fax: 412/586-6910

Project Number: H133E070024

Start Date: October 01, 2007

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 07 $949,999; FY 08 $950,000; FY 09 $950,000

Abstract: This center conducts research, development, and evaluation of innovative technologies and

approaches that will improve the treatment, rehabilitation, employment, and reintegration into society

of persons with spinal cord injury (SCI). Research and development activities address tissue integrity

management, upper extremity musculoskeletal injury prevention, and bladder function. Specific

projects address: (1) the development of computational models of inflammation and healing for assessment of person-specific interventions and for general technology/intervention evaluations for pressure

ulcer prevention and detection, (2) evaluation of the effects of support surface active cooling and low

shear followed by development and evaluation of a novel seat cushion incorporating these features, (3)

the development and evaluation of tools for manual wheelchair propulsion training, (4) the evaluation

of novel manual wheelchair propulsion devices for preventing shoulder injury, (5) the evaluation of a

weight shifting approach for preventing pressure ulcers, and (6) the development of preliminary

computational models of inflammation and healing for evaluating bladder function and musculoskeletal

injury status. The research team and collaborators include the Department of Rehabilitation Science

and Technology, the Department of Physical Medicine and Rehabilitation, the McGowan Institute for

Regenerative Medicine, and the Department of Occupational Therapy at the University of Pittsburgh

plus Case Western Reserve University, Northwestern University, Baylor College of Medicine, IBM,

and Immunetrics. The technology transfer program targets private and public sectors. The training and

knowledge translation plan is equally broad based, targeting graduate and undergraduate students,

practicing clinicians, researchers, and individuals with SCI and their caregivers.
3-20 NIDRR Program Directory FY 2009 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Accessible Public

Transportation

Carnegie Mellon University

Robotics Institute

5000 Forbes Avenue

Pittsburgh, PA 15213

www.rercapt.org

Principal Investigator: Aaron Steinfeld, PhD; Edward Steinfeld, ArchD

Public Contact: 412/268-6346; Fax: 412/268-6436

Project Number: H133E080019

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $948,199; FY 09 $947,430

Abstract: The goal of this project is to establish an effective and sustainable process to address the

high priority transportation needs of people with disabilities using enabling technology and universal

design. The RERC activities respond to the character of public transportation and its societal context,

including its significant role in employment and social participation. The approach focuses on transportation as a travel chain where problems in early links can block access to a whole system. The project

mix also leverages emerging information technologies and addresses the need for consumer-driven

solutions that can be rapidly implemented and adapted to a wide range of transportation systems.

Research and development activities include: (1) evaluate accessible and affordable tools for empowering consumers and service providers to collect and utilize research data, an example of “citizen science”; (2) provide an evidence base for boarding and disembarking policies, practices, and products

with an in-depth examination of critical issues in vehicle ramp and interior design; (3) create a public

website where riders can report on their experiences using a transportation system and software that

can assist them in reaching their destination; and (4) produce guidelines, reference designs, and a

demonstration bus with new vehicle interior concepts that are ready for commercialization. RERC

activities also include active training and dissemination of evidence-based guidelines to stakeholders,

publications, a conference, and capacity building for future research.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-21

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Telerehabilitation

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

2310 Jane Street, Suite 1300

Pittsburgh, PA 15203

dkeelan@pitt.edu

www.rerctr.pitt.edu

Principal Investigator: David M. Brienza, PhD; Michael McCue, PhD; 412/586-6907 (Brienza);

412/383-6589 (McCue)

Public Contact: Debby Keelan 412/586-6905; Fax: 412/586-6910

Project Number: H133E090002

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 09 $949,997

Abstract: This project conducts research and develops methods, systems, and technologies to support

consultative, preventative, diagnostic, and therapeutic interventions to improve and promote

telerehabilitation (TR) for individuals who have limited access to comprehensive medical and rehabilitation outpatient services. This project’s research and development activities address cognitive and

vocational rehabilitation, communication technology assessment and training, TR infrastructure, and

prevention and management of secondary conditions. Specific project goals include: (1) developing a

scalable informatics infrastructure, (2) developing and evaluating a neuropsychological assessment

protocol, (3) investigating a program of applied cognitive rehabilitation, (4) investigating the use of

remote job coaching, (5) developing and evaluating a TR enhanced wellness program in spina bifida,

(6) investigating the use of TR to manage chronic edema and lymphedema in individuals with mobility

disabilities, (7) developing and evaluating tools for augmentative and alternative communication and

computer access service delivery, and (8) TR capacity building via selected technology implementation

projects and the development of a uniform dataset for TR.
3-22 NIDRR Program Directory FY 2009 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on

Telecommunication Access

University of Wisconsin/Madison

Trace Research and Development Center

2107 Engineering Centers Building; 1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

trace.wisc.edu/telrerc

Principal Investigator: Gregg C. Vanderheiden, PhD (Trace); Judy Harkins, PhD (Gallaudet

University) 608/263-5788 (Trace); 202/561-5257 (Gallaudet)

Public Contact: Kate Vanderheiden 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E040013

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $850,000; FY 05 $924,988; FY 06 $850,000; FY 07 $850,000; FY 08

$850,000; FY 09 (No-cost extension through 9/30/2010)

Abstract: The primary mission of the Telecommunications Access RERC is to advance accessibility

and usability in existing and emerging telecommunications products for people with all types of disabilities. Telecommunications accessibility is addressed along all three of its major dimensions: user

interface, transmission (including digitization, compression, etc.), and modality translation services

(relay services, gateways, etc.). The RERC looks at advances that have both short- and long-term

outcomes related to assistive technologies (AT), interoperability, and universal design of telecommunications. The RERC encompasses research and development programs, as well as training, technical

assistance, and dissemination activities. A large part of the RERC’s research and development program

is directly related to the rapidly emerging Voice over IP (VoIP) technologies and other IP-based systems. The goal is to help ensure that these new technologies are accessible and usable by people with

hearing impairments, blindness, and other disabilities. The research and development program of this

RERC covers three areas: (1) Development of tools, techniques, and performance-based measures that

can be used to evaluate current and evolving telecommunication technologies. (2) Solving the problems faced by individuals using hearing aids or cochlear implants with digital phones. (3) Improving

access to emerging telecommunications - particularly digital and IP based systems. Projects in this area:

(a) Identify techniques to alert people about possible emergencies and to ensure accessible communication in emergency or crisis situations; (b) seek solutions for the current incompatibility issues around

text communications and ways to build the necessary capabilities into mainstream technologies, to

allow them to evolve to new text, speech, and visual communication technologies; and (c) develop

guidelines and reference materials to help mainstream telecommunications manufacturers build their

regular products in a way that allows individuals with visual, hearing, physical, and cognitive disabilities to be able to use them. The goals of the RERC’s training, technical assistance, and dissemination
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-23

activities are: To increase the number and level of expertise of people working to make standard

telecommunication systems and products accessible and usable for people who have disabilities or who

are aging; to move ideas and concepts out into the field in the form of standards or commercial products; and to provide useful information from our research to the telecommunications industry, consumers, and policymakers.
3-24 NIDRR Program Directory FY 2009 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center for Universal Interface

and Information Technology Access

University of Wisconsin/Madison

Trace Research and Development Center

1550 Engineering Drive, Room 2107 ECB

Madison, WI 53706-1609

info@trace.wisc.edu

trace.wisc.edu/itrerc

Principal Investigator: Gregg C. Vanderheiden, PhD 608/263-5788

Public Contact: Kate Vanderheiden 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E080022

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $950,000; FY 09 $950,000

Abstract: This project focuses on the accessibility of information technologies and electronic products,

including the technologies and products encountered in education, work, travel, and in the home and

community, both online and in life, for persons across disabilities types and socio-economic levels.

This project’s four goals focus on the following: (1) the development of models and measures that can

lead to better policy and more useful information for designers interested in creating products that are

accessible and useable across disabilities; (2) creating a collaborative effort to build accessibility

directly into the Internet and address underlying issues in the area of assistive technology; (3) advancing research on and the use of personal pluggable user interfaces focusing on their effectiveness in

providing access to different types of mainstream technology (Project R2) and facilitating the incorporation of interface sockets in mainstream products (Project D2); and (4) continuing to advance commercial practice around accessibility; that is, taking concepts that have proven to be effective and

making commercially available products which address the needs of people with disabilities. Each of

these four goals seeks to foster change in rehabilitation or commercial practice, so that people with all

levels of disability and all levels of socio-economic standing have effective access to both current

technology and the rapidly evolving next-generation technologies. Finally, this project focuses on

capacity building in the field through training and mentoring activities in affiliation with the Biomedical Engineering and Industrial & Systems Engineering departments at the University of WisconsinMadison in addition to other key stakeholders engaged in making information technology more accessible for people with disabilities.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-25

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on

Telecommunications Access

University of Wisconsin/Madison

Trace Research and Development Center

2107 Engineering Centers Building

1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

trace.wisc.edu/telrerc

Principal Investigator: Gregg C. Vanderheiden, PhD (Trace); Judy Harkins, PhD (Gallaudet

University) 608/263-5788 (Trace); 202/561-5257 (Gallaudet)

Public Contact: Kate Vanderheiden 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E090001

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 09 $950,000

Abstract: This project lays the foundation for access in next generation technologies and creates

bridge technologies, allowing users to migrate to new communication technologies without losing

access to emergency services or the ability to communicate with colleagues and family who are still on

older telecommunication networks. Extending across disabilities and technology platforms, research

and development activities focus on three specific issues: (1) telecommunication access in emergency

situations, (2) interoperability and transition between current and next generation telecommunication

access, and (3) access to telecollaboration for employment and participation. Project R1 focuses on

identifying and quantifying the problems faced by people with hearing loss in using new IP telecommunications products and networks. The project includes both a user input-gathering activity and a

study to quantify the impact of IP transmission on hearing loss. Projects R2 and D1 focus on

telecollaboration and include a series of 14 sessions with consumer groups, software developers, and

corporate users to identify barriers and potential strategies for increasing access to telecollaboration

systems. Project D2 addresses the transition between legacy and next-generation text communication

technologies. The project has two components: develop and prototype an affordable interim solution to

reconnect deaf users of mobile technology who lost access to 9-1-1; and prototype a bridge technology

for maintaining interoperability between old and new text communication technologies during the

decade of transition to the next-generation (interoperable) text and total conversation (text, voice, and

video) technologies. Project D3 provides research, prototypes, consultation, tools, and open source

implementations, and other support to consumers, researchers, and industry in order to help move

solutions that are already known and proven out of research labs and into commercial products, industry standards, professional practice, and ultimately users’ hands.
3-26 NIDRR Program Directory FY 2009 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Fundamental Issues in Wayfinding Technologies

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

rerc@ski.org

www.ski.org/Rehab/JABrabyn_lab/General/wayfinding.html

Principal Investigator: John A. Brabyn, PhD 415/345-2110

Public Contact: Deborah Gilden, PhD 415/345-2000; Fax: 415/345-8455

Project Number: H133A060056

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 06 $449,872; FY 07 $449,954; FY 08 $449,952; FY 09 No-cost extension

through 04/30/2010

Abstract: This project conducts a broad spectrum of research to strengthen the foundations of

wayfinding technology for assisting blind and visually impaired individuals to travel safely and independently. Rather than developing additional devices, this project addresses fundamental questions in

wayfinding technology research: What information do blind and visually impaired travelers really want

and need for safe independent travel? Why is there such an extreme range in navigational facility

within the visually impaired population? What are the upper limits of the information that can be

gained from traditional orientation and mobility training and environmental cues? How are the subtle

auditory cues affected in subpopulations with different types of hearing loss? How should wayfinding

performance, and barriers to it, be quantified so that future progress can be measured? What is the role

of advance travel planning? By pursuing answers to these fundamental questions rather than adding

more technology-driven devices to the existing selection, this research improves understanding about

the efficacy and optimal applications of navigation and travel technologies and techniques. This

provides a research-based foundation to inform and improve: (1) orientation and mobility instructional

strategies; (2) the design of new wayfinding technologies; and (3) future research.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-27

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Technology Access in Resource-Limited Environments

San Francisco State University

1600 Holloway Avenue, SCI 251

San Francisco, CA 94132-4163

reisinger@whirlwindwheelchair.org

Principal Investigator: Kim Reisinger, PhD 415/338-6277

Public Contact: 415/338-6277; 708/672-6097; Fax: 415/338-1290; 708/672-6097

Project Number: H133A090020

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 09 $950,000

Abstract: This project explores the factors affecting awareness of, access to, and acquisition of highquality, low-cost assistive technology (AT) in resource-limited environments (RLEs) within developing

countries and US Tribal Lands. A systematic approach is taken to investigate the following three

questions: (1) what factors influence AT provision; (2) why some models of AT provision are successful and under what conditions, as collectively perceived by manufacturers, distributors, service providers, and AT users and their families or caregivers; and (3) how stakeholders can create successful AT

provision programs. The project uses a comprehensive review of the current methods of AT provision

in literature, focus groups, and semi-structured interviews to develop surveys which are then administered to AT manufacturers/distributors, service providers, and individuals with disabilities (IWD) in

five developing countries and US Tribal Lands. The survey data identify the influent factors in successful AT provision programs and effective communication methods to reach IWD in RLEs. The

Assistive Technology Access System Development Guide, an evidence-based tool, is developed and

used to improve existing AT provisions or provide solutions for new programs for three contextually

different RLEs case studies. Project research provides the field of AT provision in developing countries

and US Tribal Lands with the quantitative research and tools to steer future action; and the evaluation

mechanisms to drive change on every level from the individual up to global policy makers.
3-28 NIDRR Program Directory FY 2009 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

North Carolina

Consortium for Assistive Technology Outcomes Research (CATOR) II

Duke University

Division of Speech Pathology and Audiology

DUMC 3888

Durham, NC 27710

frank.deruyter@duke.edu

www.AToutcomes.com

Principal Investigator: Frank DeRuyter, PhD

Public Contact: Jessica House 919/681-9983 (V); 919/684-6626 (TTY); Fax: 919/681-9984

Project Number: H133A060062

Start Date: January 01, 2007

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $449,994; FY 07 $449,995; FY 08 $449,995

Abstract: The Consortium for Assistive Technology Outcomes Research (CATOR-II), in collaboration with the RRTC on Measuring Rehabilitation Outcomes and Effectiveness and several other

NIDRR-funded programs, enhances understanding of the impact of AT on the lives of people with

disabilities by conducting a research project that systematically applies state-of-the-science measures of

AT interventions, outcomes, and data collections mechanisms. The purpose of this project is to improve the AT field’s ability to measure the impact of AT on the lives of people with mobility disabilities, with the potential to supplement or supplant the instruments and techniques available to researchers, service providers, and policy makers. Project R-1 produces a state-of-the-science instrument for

measuring outcomes for mobility AT devices based on applications of item response theory and computer adaptive testing. Project R-2 produces a state-of-the-science instrument for specifying and measuring key aspects of mobility AT treatment interventions, along with two consensually endorsed

classifications of mobility devices and services. Together, these products provide a foundation to

improve reporting of interventions in research publications and assess treatment fidelity in AT outcome

studies. Drawing on the advanced measures emanating from projects R-1 and R-2, Project R-3 uses an

experimentally controlled design to examine the conditions under which a change in assistance strategy, induced by a mobility AT intervention, enhances the functional performance, well-being, and

device satisfaction of stroke survivors and decreases the assistance being received from cohabitating

caregivers.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-29

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Pennsylvania

Information Technology for Independence:

Community-Based Research

University of Pittsburgh

6026 Forbes Tower

Pittsburgh, PA 15260

parmanto@pitt.edu

www.pitt.edu/~curbcut

Principal Investigator: Bambang Parmanto, PhD

Public Contact: 412/383-6649; Fax: 412/383-6655

Project Number: H133A021916

Start Date: January 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $299,945; FY 03 $299,534; FY 04 $299,945; FY 05 $299,384; FY 06

$298,903; FY 07 (No-cost extension through 12/31/2008); FY 08 (No-cost extension through 12/31/

2009)

Abstract: This project explores methods and technologies to mitigate barriers to computer and Internet

use encountered by people with visual impairments. These barriers include limited computer ownership and Internet availability, difficulty in obtaining and using accommodations for functional limitations (including cost issues), psychological barriers arising from inadequate coaching or mentoring, and

the limited accessibility of most websites to individuals with visual impairments. Accessibility can be

promoted through computer ownership, Internet availability, assistive technologies, and knowledgeably-staffed public computer stations, such as at independent living centers. Evaluation of these barriers and of identified accommodation strategies is the first research task of this project. Preceded by

focus groups and a widely-disseminated survey, the match of correct assistive device(s) to the individual and appropriate coaching and mentoring is tested at community-based computer laboratories.

The second research task is to develop and evaluate a new approach to Internet accessibility — a

Gateway server. This Gateway transforms the contents of any website, whatever its level of accessibility, into the most accessible format for each Internet user, as Google does for personal digital assistant

(PDA) users. The Gateway promotes Internet accessibility without requiring that commercial websites

follow promulgated guidelines or standards for users with disabilities, something that web developers

often seem to resist. Additionally, this project develops innovative metrics that enable the most rigorous

approach to the analysis of Internet accessibility and is conducting large-scale studies of different

topical categories of websites to measure progress in accessibility over time and identify the impact(s)

of new technologies.
3-30 NIDRR Program Directory FY 2009 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

A Robotic Powered Wheelchair Trainer with Haptic

Guidance as Needed

University of California

Mechanical and Aerospace Engineering

4200 Engineering Gateway

Irvine, CA 92697-3975

dreinken@uci.edu

Principal Investigator: David J. Reinkensmeyer, PhD

Public Contact: 949/824-5218; Fax: 949/824-8585

Project Number: H133G090111

Start Date: October 01, 2009

Length: 24 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 09 $100,598

Abstract: This project develops a robotic powered wheelchair (WC) system on which individuals

with severe disabilities can safely learn and develop driving skills at their own pace with minimum

assistance from a therapist. A powered WC is equipped with a webcam (simple video camera) to

achieve a self-steering function along a training course, and a force-feedback joystick to implement an

algorithm that can demonstrate (through intuitive movement and force of the joystick itself) exemplary

control to follow the course, while systematically modulating the strength and sensitivity of such haptic

demonstration. This method gradually exposes the individual to the dynamics of a normal powered

WC, in an analogous fashion to bicycle training wheels. The idea is to let the individual learn from the

experience of making errors repeatedly and safely in a structured environment, while reducing demands on the supervising therapist.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-31

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Delaware

Multimodal Access to Information Graphics

University of Delaware

Electrical and Computer Engineering Department

140 Evans Hall

Newark, DE 19716

barner@ee.udel.edu

www.ece.udel.edu/~barner

Principal Investigator: Kenneth Barner, PhD

Public Contact: 302/831-6937; Fax: 302/831-4316

Project Number: H133G080047

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 08 $199,975; FY 09 $199,796

Abstract: This project addresses the accessibility of a specific class of graphics, referred to as information graphics, that consist of bar charts, pie charts, line graphs, etc. Although information graphics

comprise only a subset of graphics-based information, they are prevalent in information resources and

constitute a set of sufficiently similarly characterized graphics to enable automated processing. To

address the accessibility of this class of graphics, this project develops a system for automatically

generating multimodal representations of information graphics. The multimodal representations consist

of automatically generated tactile graphics and automatically generated textual summaries designed to

convey the intended core message of the graphic. This development is based on the latest research in

the image processing, computer vision, statistical inference, natural language understanding, processing, and generation, as well as universal design and human computer interaction. The multimodal

information graphic system (MIGS) is developed to work directly with existing tactile printers and

Braille/synthesized speech output methods; and provides users with visual impairments, as well as

others benefiting from multimodal displays, greater independent access to the proliferating body of

information graphics. This project determines the optimal tactile graphic design methods and optimal

text-base summarization approach based on preferences of potential users of the MIGS system, and

evaluates MIGS component effectiveness in providing access to graphical information.
3-32 NIDRR Program Directory FY 2009 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

District of Columbia

Accessible Digital Radio Broadcast Services

National Public Radio

NPR Labs

635 Massachusetts Avenue NW

Washington, DC 20001-3753

mstarling@npr.org

www.nprlabs.org

Principal Investigator: Mike Starling

Public Contact: 202/513-2484; Fax: 202/513-3024

Project Number: H133G060187

Start Date: October 01, 2006

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 06 $150,000; FY 07 $150,000; FY 08 $150,000; FY 09 (No-cost extension

through 1/31/2010)

Other Funding: FY 07 $25,000 Harris Corporation; FY 08 $25,000 Harris Corporation

Abstract: In this project, National Public Radio (NPR) and its partners prototype, field test, and assess

the most appropriate technologies, service models, and operational techniques in the accessible design

of mass-market digital radio services to better serve consumers with sensory disabilities. This work

produces best practice demonstrations and service options with strong prospects for mass-market

adoption within digital radio services and receivers, options that model how digital radio can provide:

mainstreamed digital reading radio services; live video description synchronized to broadcast; buffering

for rewind/replay/catch-up to aid comprehensibility; accessible controls, displays, and menu options on

digital radio receivers; and caption displays of audio on digital radio receivers or ancillary displays.

Best practice demonstrations and service options benefit from iterative and comprehensive user evaluations led by research experts. Furthermore, NPR and its partners have extensive collaborative relationships within the industry that ensure widespread impact on products and services available to people

with sensory disabilities.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-33

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

District of Columbia

An Automatic Fitting Algorithm for Cochlear Implant

Gallaudet University

Department of Hearing, Speech, and Language Sciences

800 Florida Avenue, NE

Washington, DC 20002

matthew.bakke@gallaudet.edu

www.hearingresearch.org

Principal Investigator: Matthew H. Bakke, PhD

Public Contact: 202/651-5335 (V/TTY); Fax: 202/651-5324

Project Number: H133G060065

Start Date: October 01, 2006

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $146,562; FY 07 $149,533; FY 08 $149,895; FY 09 (No-cost extension

through 9/30/2010)

Abstract: The purpose of this study is to design and evaluate an automatic cochlear implant fitting

algorithm based on a paired comparison adaptive approach to guide audiologists in choosing the best

frequency allocation for the individual client. Frequency allocation can impact speech recognition

abilities and in turn communication. This work entails a systematic search for an optimum frequency

allocation using a modified Simplex procedure. This study consists of three experiments. One is the

discrimination of frequency analysis band wherein minimally detectable differences in frequency shifts

along the electrode array are identified. In the second experiment, subjects are computer-guided to

search for an optimal frequency allocation among cells in a matrix, with the results from experiment

one defining the cell content. The third experiment, the speech battery test, consists of speech perception experiments with the new map using nonsense syllable, phoneme, and sentence stimuli. Experiment 2 and experiment 3 are recursively conducted until the results converge with up to six sessions

per subject required to finish the experiment. During the subject’s first and last visits, he/she completes

the Communication Profile for the Hearing Impaired (CPHI) and a questionnaire similar to the Abbreviated Profile of Hearing Aid Benefit (APHAB). Four normal hearing native English speakers evaluate the experimental procedure and the speech processing algorithm. Fifteen post-linguistically deafened Nucleus 24 cochlear implant users complete the study.
3-34 NIDRR Program Directory FY 2009 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

District of Columbia

Personal Audio Information Service

National Public Radio

NPR Labs

635 Massachusetts Avenue NW

Washington, DC 20001-3753

mstarling@npr.org

www.nprlabs.org

Principal Investigator: Mike Starling; Ellyn Sheffield, PhD

Public Contact: 202/513-2484; Fax: 202/513-3024

Project Number: H133G070093

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 07 $200,000; FY 08 $200,000; FY 09 $200,000

Abstract: This project defines and demonstrates a Personal Audio Information Service (PAIS) - a new

mainstream system that expands the lifeline services currently offered to people with visual impairments through audio information services (AIS) by automatically assembling a selection of locally

relevant, customized audio content from current AIS broadcasts. The PAIS system combines the

established framework of audio information services with the new programming flexibility that is

afforded by HD Radio (the new FCC standard for digital radio broadcasting), creating a powerful ondemand radio system that will substantially improve media access for millions of American consumers

with print disabilities. The project: (1) develops efficient audio interfaces for selecting, navigating, and

listening to content; (2) develops effective systems for tagging, subdividing, and collecting topic-based

content; (3) develops and demonstrates a full-scale PAIS system in a real world broadcast pilot; and (4)

documents and publishes recommended best operating practices for audio information service providers and consumer electronics manufacturers to fully deploy PAIS technologies.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-35

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

District of Columbia

The Captioned Braille Radio Initiative: Providing Emergency

Information for Individuals who are Deaf-Blind

National Public Radio

NPR Labs

635 Massachusetts Avenue NW

Washington, DC 20001-3753

mstarling@npr.org

www.nprlabs.org

Principal Investigator: Mike Starling

Public Contact: 202/513-2484; Fax: 202/513-3024

Project Number: H133G090139

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 09 $200,000

Abstract: This project focuses research activities on the standardization of a Captioned Braille Digital

Radio service model designed to serve consumers who are deaf-blind. Individuals who are deaf-blind

require technology that will allow them to obtain the same important information hearing consumers

take for granted, such as emergency alerting, disaster relief information, weather, traffic reports, school

closings, and breaking news. During emergencies, Americans rely on radio for crucial information to

guide their decisions and behavior. The development of captioned radio for the deaf and hard-ofhearing is well under way. This project has already yielded a nationwide demonstration of a captioned

radio system with off-the-shelf transmission equipment and reference receivers. Designing and implementing these Captioned Braille Digital Radio standards concurrently along with those of Captioned

Radio creates a single unified accessibility standard that can be supported by all digital radio broadcasters and receiver manufacturers for both Type I and Type II Braille, including buffering for store and

replay. The envisioned Captioned Braille Digital Radio service is designed to work with USB and

Bluetooth connections to the consumer’s existing electronic braillers. Service design tests and implements an effective menu structure, and provides porting support for bed-shakers and other assistive

devices for activation during overnight emergencies generating immediate evacuation or shelter in

place instructions, such as wildfires or tornados.
3-36 NIDRR Program Directory FY 2009 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

Workplace Accommodation Wizard: An Assessment and

Accommodation Tool for Employers

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

workrerc@coa.gatech.edu

www.workrerc.org

Principal Investigator: Karen Milchus 404/894-0393

Public Contact: 800/726-9119 404/894-1414; Fax: 404/894-9320

Project Number: H133G070063

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 07 $196,460; FY 08 $199,801; FY 09 $195,616

Abstract: The purpose of this project is to develop the Workplace Accommodation Wizard that

enables human resource personnel to identify employees’ needs and solutions for workplace accommodations. The Wizard includes both an employer-driven assessment tool and a rule-based system for

using the assessment information to identify specific accommodations from assistivetech.net, the

national public internet site on Assistive Technology (AT), which contains information on over 18,000

AT products. Development of the Workplace Assessment Wizard includes: (1) creation of the assessment protocol; (2) evaluation and revision of the protocol; (3) development of the rule set; (4) development of the web application; and (5) product testing and revision of content, usability, and accessibility.

This workplace-specific assessment tool combined with a comprehensive database of AT enables

human resource personnel in a variety of employment sectors to conduct a workplace assessment, find

potential accommodations, read reviews of those accommodations, and find links to specific products.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-37

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Web-Based Treatment for Aphasia

Rehabilitation Institute Research Corporation

Center for Aphasia Research

345 East Superior Street, Room 1353A

Chicago, IL 60611

lcherney@ric.org

Principal Investigator: Leora R. Cherney, PhD

Public Contact: 312/238-1117; Fax: 312/238-2208

Project Number: H133G060055

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $146,316; FY 07 $145,529; FY 08 $149,932; FY 09 (No-cost extension

through 10/31/2010)

Abstract: This project conducts a randomized clinical trial to develop and implement an innovative,

broadband, web-based treatment program for individuals with chronic aphasia, and evaluates its

efficacy and cost-effectiveness. The treatment, Oral Reading for Language in Aphasia (ORLA), is

based on a theoretical framework that incorporates two lines of work: the neuropsychological models

of reading and observation-execution-matching. The treatment has been computerized and the current

version of ORLA uses state-of-the-art virtual therapist technology that allows the individual with

aphasia to read aloud, and ultimately speak, sentences at the same time as the words are produced by a

perceptive, life-like, animated computer agent, using visible speech. In this clinical trial, ORLA treatment is delivered via the Internet and outcomes are compared to a placebo computer treatment.

Twenty-five individuals with chronic aphasia (at least 12 months post onset) are randomized to one of

two groups: oral reading treatment group and a control group in which subjects participate in nonlanguage computer activities. Both groups practice for nine hours per week and treatment continues for

a six-week period of time. Language and communication skills are evaluated pretreatment, immediately post-treatment, and at six weeks after the end of treatment to assess maintenance effects. The

primary outcome measure is the Aphasia Quotient of the Western Aphasia Battery. Additionally,

secondary outcome measures have been selected with consideration of the ICFDH-2 categories of

body structure/function, activity, and participation, and include a variety of standard aphasia tests as

well as quality of life indices.
3-38 NIDRR Program Directory FY 2009 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Overcoming Gravity Induced Arm and Hand Dysfunction to Restore

Functional Reaching Following Stroke

Northwestern University

Department of Physical Therapy and Human Movement Sciences

645 North Michigan Avenue, Suite 1100

Chicago, IL 60611

j-dewald@northwestern.edu

dewaldlab.com/

Principal Investigator: Julius Dewald, PT, PhD 312/908-6788

Public Contact: 312/908-6788; Fax: 312/908-0741

Project Number: H133G070089

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 07 $195,867; FY 08 $194,252; FY 09 $196,457

Abstract: This study uses a 3-D force-controlled robot to test whether electrical stimulation of extensor muscles can overcome the associated abnormal flexor activity of the elbow, wrist, and fingers

during reaching under progressively larger gravitational loads. Furthermore, if indeed wrist and finger

flexors can be overpowered, this study determines if a multi-electrode array can be implemented to

selectively stimulate wrist extensors independently of finger extensors during the same reaching

conditions. Selective stimulation, if successful, would increase the functional repertoire of the hand and

enhance the quality of life of stroke survivors. To support the fundamental premise that abnormal

flexor activity exists in individuals with stroke, the project measures the progressive increase in abnormal wrist and finger flexion associated with supporting increasing amounts of the upper limb’s weight.

This is accomplished by using a 3-D force-controlled robot to virtually manipulate the amount of

gravity experienced during reaching in 45 chronic stroke survivors (aim 1). Next, the project quantifies

the impact of electrical stimulation of the elbow, wrist, and finger extensors on elbow, wrist, and finger

extension range of motion when progressively increasing the weight of the paretic limb with the robot

during reaching (aim 2). Finally, the project investigates the application of an existing multi-electrode

stimulation array to determine if wrist and finger extensors can be selectively stimulated (aim 3).
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-39

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Video Gaming Technology to Promote Health and Fitness Among

Adolescents with Disabilities

University of Illinois at Chicago

Institute on Disability and Human Development

1640 West Roosevelt Road, Suite 713

Chicago, IL 60608

Principal Investigator: Jennifer Rowland

Public Contact: 312/413-1850

Project Number: H133G080120

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 08 $183,463; FY 09 $168,672

Abstract: This project adapts active video games for use by youth with physical disabilities, and

assesses their feasibility and effectiveness as an exercise modality for increasing energy expenditure

and improving cardiorespiratory fitness. The study is conducted in three phases: Phase I: Adaptation

and Feasibility Testing; Phase II: Dose- Response Energy Expenditure; and Phase III: Cardiorespiratory Fitness Trial. In Phase I, adaptations are implemented that allow youth with disabilities to play

active video games using upper extremity movement to participate in the games. The accessibility and

safety of these adaptations is assessed through pilot testing, and, if necessary, modifications to the

adapted video games are made based on participant feedback and observation. Researchers collect

exercise intensity data associated with various games designed for both EyeToyTM (ET) and Dance,

Dance Revolution(TM) (DDR) devices. These data are used to classify specific games into mild,

moderate, and vigorous activity. Phase II examines the dose-response relationship between energy

expenditure and exercise intensity for both active video games and a standard exercise modality for

individuals with disabilities (arm cycling). Participants complete energy expenditure assessments for

three levels of intensity (mild, moderate, and vigorous) for each exercise modality (arm cycling, DDR,

and ET). Phase III is a randomized controlled trial examining the effects of active video games compared to arm cycling and normal activity controls in improving cardiorespiratory fitness in adolescent

manual wheelchair users. Participants in both intervention groups will take part in a 10-week, 3 days/

week exercise training program designed to increase aerobic capacity. Primary outcome measures

include cardiorespiratory fitness, energy expenditure, and satisfaction with physical activity.
3-40 NIDRR Program Directory FY 2009 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Kansas

Experimental Evaluation of the Online and Applied System for

Intervention Skills (OASIS) Training Program Using VideoConferencing for Parents of Children with an Autism Spectrum

Disorder

University of Kansas

Center for Child Health and Development

3901 Rainbow Boulevard., MSN 4003

Kansas City, KS 66160

lhpowell@ku.edu

www.jgcp.ku.edu/

Principal Investigator: Linda S. Heitzman-Powell, PhD

Public Contact: 913/588-5588; Fax: 913/588-5916

Project Number: H133G090136

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 09 $199,910

Abstract: This project evaluates the Online and Applied System for Intervention Skills (OASIS)

Training Program, a program that uses a Research-to-Practice Outreach Training model to teach

parents of children with an autism spectrum disorder (ASD) how to implement empirically-based

interventions with their children. The evaluation of the OASIS program includes two studies. The

purpose of Study 1 is to: (1) conduct a between-group experimental analysis of the effectiveness of the

final iteration of the OASIS training program developed during a previously funded development

project, and (2) conduct a within subject analysis of the effects of OASIS on parent knowledge and

skill fluency with implementation of behavioral techniques with their child, family quality of life, and

child language and social engagement post treatment and during follow-up measures. The purpose of

Study 2 is to assess the long-term impact of the OASIS program on parents and children who previously completed training. Study 2 continues collection of family outcome, intervention-specific, and

child outcome data on families who have experienced the OASIS intervention as a part of the intervention development phase in order to obtain preliminary information about long term effects.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-41

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Maryland

Optimized Hands-Free Speech Recognition

UMBC

Information Systems Department

1000 Hilltop Circle

Baltimore, MD 21250

asears@umbc.edu

Principal Investigator: Andrew Sears, PhD

Public Contact: 410/455-3883; Fax: 410/455-1531

Project Number: H133G050354

Start Date: December 01, 2005

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 05 $149,882; FY 06 $149,997; FY 07 $149,774; FY 08 (No-cost extension

through 11/30/2009)

Abstract: The goal of this project is to take the collected hands-free speech recognition scientific

knowledge and interface solutions, which have been individually developed and proven, and incorporate those into a commercially available user interface software product. The project follows an iterative user centered design process whose three main phases correspond roughly to the three years of the

project. In phase 1, past research results are incorporated into a prototype design, which undergoes

usability testing in the lab. In phase 2, an “alpha” version of the product is placed in a small number of

users’ homes and/or offices, where they use the prototype for up to six months and keep a diary of

their experiences. In phase 3, a “beta” version of the software is tested by a larger number of users over

a period of six months. In this trial the users are subject to surveys regarding ease-of-use, and they and

the developers participate in an open online discussion/feedback forum for users. The end of phase 3

includes a final refinement of the product and evaluations of the performance of the new software

product, and (for marketing purposes) a comparison of performance of the hands-free implementations

of speech recognition software commercially available at that time. This project culminates with

“Version 1.0” which will be made available to the general public.
3-42 NIDRR Program Directory FY 2009 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Captioning Solutions for Handheld Media and Mobile Devices

Development

WGBH Educational Foundation

National Center for Accessible Media

One Guest Street

Boston, MA 02135

access@wgbh.org

www.wgbh.org/ncam

Principal Investigator: Geoff Freed

Public Contact: Mary Watkins 617/300-3700; Fax: 617/300-1020

Project Number: H133G070122

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 07 $200,000; FY 08 $200,000; FY 09 $200,000

Abstract: This project explores barriers to portable media for deaf and hard-of-hearing users and

develops captioning solutions that serve as models for the mobile media and technology industries and

for public policy developers. The project team identifies, tests, and prototypes required accessibility

changes in mobile media production tools, formats, transport mechanisms, and display technologies.

Prototypes model technical solutions for packaging, compression, identification, retrieval, download,

processing, and porting of captioned video to portable devices. Prototypes also model mobile caption

display options and explore customization capabilities. Consumers who are deaf or hard-of-hearing

participate in end-user testing to evaluate the usability of project solutions. Project deliverables include:

(1) prototypes that model multiple methods of creating, distributing, downloading, and displaying

captioned content on handheld devices; (2) publication of usability research on accessible interface and

caption display options; and (3) comprehensive functional requirements that detail production processes and software and hardware enhancements required for content creators, service providers, and

third party tool developers to create and transcode captions and caption feature sets and capabilities

required for open as well as proprietary mobile media formats and device-specific players to render

captions.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-43

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Caption Accuracy Metrics Development Project

WGBH Educational Foundation

One Guest Street

Boston, MA 02135

ncam@wgbh.org

ncam.wgbh.org

Principal Investigator: Marcia Brooks

Public Contact: 617/300-3431; Fax: 617/300-1035

Project Number: H133G080093

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 08 $200,000; FY 09 $200,000

Abstract: This project utilizes language-processing tools to develop an automated caption accuracy

assessment system for real-time captions for live news programming as well as classroom-based

communication access real-time translation (CART) captioning. Additionally, this project researches

whether text-based data mining and automatic speech recognition technologies can produce meaningful data about stenocaption accuracy that meets the need for caption performance metrics. Advisors

include the National Institute of Standards and Technology, IBM, Nuance, the Massachusetts Institute

of Technology, Gallaudet University, and the National Technical Institute for the Deaf. Prototypes are

reviewed by major stakeholders at Technical Review Meetings. Iterative tests and modifications within

major stenocaption and broadcast operations facilities provide real-world assessments of the system’s

ability to produce meaningful caption accuracy metrics. A reliable performance measurement tool that

can analyze the quality of real-time captioning, developed with input from industry leaders, deaf

education experts, and the Federal National Institute of Standards and Technology, provides Congress

and the FCC with much-needed, independently verified data to establish caption accuracy requirements, and greatly improves the ability of the television community to monitor and maintain the quality

of live captioning they offer to viewers who are deaf or hard of hearing.
3-44 NIDRR Program Directory FY 2009 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Minimal Classroom Requirements for Optimal Acoustic Access to

Speech by Children with and Without Hearing Loss

Clarke School for the Deaf

47 Round Hill Road

Northampton, MA 01060-2199

figlehart@clarkeschool.org

Principal Investigator: Frank Iglehart, PhD

Public Contact: 413/584-3450; Fax: 413/582-1187

Project Number: H133G060116

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 06 $68,869; FY 07 $51,122; FY 08 $56,282

Abstract: The purpose of this project is to measure the effects of classroom noise and reverberation on

speech perception by children with varying degrees of hearing loss and of different ages. The effects of

speech-to-noise ratio (0 dBA S/N, +10 dBA S/N, and +20 dBA S/N) and reverberation (RT = 0.25,

0.50 and 1.0s) on sentence-level speech perception are measured as functions of age (5-16 years) and

degree of hearing loss (mild to profound). Normative data is also collected, as a function of age, on

children with typical hearing. This project addresses several questions: (1) What limits on noise and

reverberation are required for optimal speech perception by children with hearing loss? (2) Can the

need for access to speech among children with different degrees of hearing loss be met with a single

set of criteria for classroom acoustics? (3) To what extent do these criteria vary with age among children with typical hearing and those with hearing loss?
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-45

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Preparations for In-home Testing of Brain-Computer Interfaces

Operating Assistive Technology

University of Michigan

MIB C640

1500 East Medical Center Drive

Ann Arbor, MI 48109-5841

janeh@umich.edu

www.umich.edu/~umdbi/

Principal Investigator: Jane Huggins, PhD

Public Contact: 734/936-7170; Fax: 734/936-7515

Project Number: H133G090005

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 09 $199,999

Abstract: This project prepares for in-home testing of brain-computer interfaces (BCIs) among target

user populations across the lifespan, including people with amyotrophic lateral sclerosis, muscular

dystrophy, spinal cord injury, and cerebral palsy. BCIs have long been used in the laboratory, but

although their capabilities have for several years seemed sufficient to be of benefit to people with the

most severe physical impairments, they have not been available for purchase or in-home use. While the

BCI field has been rapidly expanding in numbers of related publications, research has largely focused

on signal processing advances, not on practical hurdles to home use of BCIs. Only in the last few years

have BCIs been taken out of the laboratory for testing in home environments were they can have a real

impact on independence and employment. However, the input of people with physical impairments has

not been pursued in an organized fashion by BCI researchers. The specific aims of the project are: (1)

develop improved BCI cursor movement capabilities for integration with computer-based assistive

technologies; (2) demonstrate and quantify the ability of subjects from potential target user populations

to functionally use BCIs; and (3) identify and quantify the design considerations that are of the highest

priority to people with specific impairments.
3-46 NIDRR Program Directory FY 2009 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Jersey

Improved Weight Bearing Evaluation of Knee Osteoarthritis

Kessler Foundation

Kessler Foundation Research Center

1199 Pleasant Valley Way

West Orange, NJ 07052

pbarrance@kesslerfoundation.org

Principal Investigator: Peter Barrance, PhD

Public Contact: 973/324-3550; Fax: 973/243-6984

Project Number: H133G080136

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $199,964; FY 09 $199,480

Abstract: The objective of this project is to develop refined upright MRI imaging and computer

modeling methods that allow assessment of patients with osteoarthritis (OA) during weight bearing. To

optimize available non-surgical OA treatments, refined imaging methods are needed to measure

changes in knee positioning and cartilage contact while weight bearing. The project builds on pilot

work that demonstrated the ability to derive quantitative measures of cartilage contact positioning from

weight bearing MRI images. Three specific focus areas for development are: (1) to develop a more

efficient and accurate method for positioning patients with symptomatic knee OA and determine the

limits of duration for weight bearing MRI scanning; (2) to improve and expand methods for maintaining consistent measurement reference frames through changing positions and loading conditions; and

(3) to expand capabilities needed to describe contact area and cartilage depth at the contact sites.

Researchers validate the methodological developments using laboratory experiments and a study with

OA patients when lateral wedge insoles are prescribed to relieve loading of the knee’s medial compartment.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-47

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

North Carolina

Micromachined Braille Reader

North Carolina State University

2410 Campus Shore Drive, MRC 443

Raleigh, NC 27695-7514

Principal Investigator: Paul D. Franzon

Public Contact: 919/515-7351; Fax: 919/515-2285

Project Number: H133G070135

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 07 $199,446; FY 08 $199,083; FY 09 $199,083

Abstract: This project develops a low-cost, portable Braille display utilizing Polyvinylidene Floride

(PVDF), an electro-active polymer, to create a novel, low-power, low-voltage bistable actuator. The

dots in this display are produced with more force and are easier to read. By using PVDF and silicon

micromachining techniques, there is the potential for each Braille cell to cost $5 or less, as compared to

about $35 for the current commercial offerings. This display should use less power, be cheaper to

make, require a lower actuation voltage (thus reducing the size and cost of the control electronics), and

be easier to scale to more letters than other current prototypes.
3-48 NIDRR Program Directory FY 2009 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

North Carolina

Universal Design of Tactile Exhibits with Touch Activated Descriptive

Audio for Aquariums

RAF Models & Displays

111 Cascade Avenue

Winston-Salem, NC 27127

rafmodels@triad.rr.com

Principal Investigator: Rebecca Fuller

Public Contact: 336/722-4250

Project Number: H133G060284

Start Date: October 01, 2006

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 06 $138,740; FY 07 $144,440; FY 08 $143,060; FY 09 (No-cost extension

through 9/30/2010)

Abstract: The purpose of this project is to develop strategies and technologies that enhance the learning opportunities at aquariums for people who are blind or low vision (B/LV). The project evaluates

current aquarium exhibit strategies related to an interpretive program and assesses barriers for people

who are B/LV that functionally limit their participation in the critical learning opportunities extended to

the general public. The project identifies and develops universal design best practice strategies and

methodologies that enhance social integration and access to exhibit and interpretive information for

persons who are B/LV. The project develops cost effective technologies to couple a user-directed

tactile experience with audio descriptive information for aquarium exhibits. The project emphasizes

methodologies that emphasize user involvement by persons who are B/LV in the design and evaluation

of prototypical designs for aquariums.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-49

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Researching Accessibility Gaps in Transit Hub Communication Systems

and Standards

Oregon State University

312 Kerr Administrative Building

Corvallis, OR 97331

hunterz@engr.orst.edu

ncat.oregonstate.edu/

Principal Investigator: Katharine Hunter-Zaworski, PhD

Public Contact: 541/737-4982; Fax: 541/737-3052

Project Number: H133G090242

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 09 $199,584

Abstract: This project researches accessibility gaps within communication technologies used in

transportation hubs and identifies opportunities for universal and accessible design considerations

within industry communications standards. This research effort includes coordination with emergency

alerting initiatives deployed or in development at the national, state, and municipal level, where communications interoperability challenges are a serious problem. Research documents the state of communications technologies and practices, both in use and in development, identifies the policies and

workflows associated with information delivery, determines the transportation industry’s awareness

and use of international standards for accessible interoperable communications technologies, and

produces a gap assessment. Research results identify areas needing further study and/or technical

solutions and provide a framework for policy recommendations and consumer advocacy including: the

status of passenger communications technologies, policies, and practices, and the awareness and

adoption of accessibility standards and specifications within transit hubs; and gaps in communications

technologies, information flows, and interoperable standards that need to be addressed to safeguard the

safety of people with disabilities. This is a project of The National Center for Accessible Transportation (NCAT) at Oregon State University and the WGBH National Center for Accessible Media

(NCAM).
3-50 NIDRR Program Directory FY 2009 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

The TATE Project: Training Assistive Technology in the Environment

Teaching Research Institute

99 West 10th Avenue, Suite 370

Eugene, OR 97361

ehlhardtl@wou.edu

Principal Investigator: Laurie Ehlhardt, PhD

Public Contact: 541/346-0572

Project Number: H133G090227

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 09 $200,000

Abstract: This project develops, tests, and disseminates a systematic instructional package called the

Training Assistive Technology in the Environment (TATE) Systematic Instructional Package (SIP) for

assistive technology for cognition (ATC). TATE SIP is developed and evaluated in three phases. Phase

1 (Development) includes focus groups with individuals with TBI, caregivers, support staff, and

professionals and pilot testing the TATE SIP materials. Phase 2 (Evaluation), evaluates the effectiveness of the TATE SIP program using single subject “multiple baseline across settings” studies, evaluating TATE SIP applied to three off-the-shelf ATC devices (Palm Tungsten E2 PDA, Olympus digital

voice recorder, Timex Data Link® watch). Phase 3 (Feasibility) evaluates the ability of trainers working in everyday settings (e.g., clinicians, job coaches, caregivers) to reliably implement TATE SIP with

adults with cognitive impairments due to TBI. Outcome data measures device use (device skill acquisition), device usability (skills used in targeted environments), functional performance (activities of daily

living impacted by device use), quality of life (subjective well-being), and social participation (community integration).
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-51

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

A Means of Expression: Online Communication Assessment to Improve

Outcomes for Individuals with Severe Disabilities

Oregon Health and Science University

707 SW Gaines Road, PO Box 574

Portland, OR 97207

rowlandc@ohsu.edu

www.communicationmatrix.org

Principal Investigator: Charity Rowland, PhD

Public Contact: 503/494-2263; Fax: 503/494-2859

Project Number: H133G070129

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 07 $200,000; FY 08 $200,000; FY 09 $200,000

Abstract: This project adapts, refines, evaluates, and markets an innovative technological online tool

designed to provide appropriate assessment of communication skills for individuals with severe disabilities. The novel tool harnesses the potential of an online communication assessment protocol to

achieve immediate and meaningful individual-level outcomes in the form of cost effective and appropriate assessment, generation of appropriate educational and therapeutic goals, and monitoring of

progress. The online tool is a prototype online assessment tool for evaluating the communication skills

of individuals at the earliest stages of communication and is based on the valid and reliable Communication Matrix. The new tool is designed to be used by caregivers and professionals. This project

involves the adaptation, improvement, and expansion of this website to increase its usability and

educational utility, including alpha and beta testing and four major evaluation studies.
3-52 NIDRR Program Directory FY 2009 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Systematic Study of the Effectiveness of AAC Intervention to Improve

Conversation in Individuals with Degenerative Language Disorders

Oregon Health and Science University

3181 SW Sam Jackson Park Road

Portland, OR 97239

friedm@ohsu.edu

Principal Investigator: Melanie Fried-Oken, PhD; Charity Rowland, PhD; 503/494-7587; 503/494-

2263

Public Contact: 503/494-2619

Project Number: H133G080162

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $200,000; FY 09 $200,000

Abstract: This project continues previous research in alternative and augmentative communication

(AAC) tool use for adults with primary progressive aphasia (PPA) resulting from frontotemporal lobar

dementia. Project objectives include: (1) to test the extent to which AAC intervention is associated

with changes in conversation for persons with moderate Alzheimer’s disease and persons with primary

progressive aphasia under controlled conditions; (2) to test the extent to which AAC use is associated

with daily functional changes in conversation for the two participant groups under natural conditions;

and (3) to describe the behavioral and socio-relational characteristics of caregiver/partners and participants who display improved conversational skills with AAC treatment. Research is conducted with

100 adults from the Alzheimer’s Disease Research Centers in Portland, OR and San Francisco, CA.

AAC devices are customized for each participant with specific vocabulary depicting autobiographical

memories and functional activities. Each participant engages in a spaced retrieval priming task followed by videotaped conversations with and without the AAC device in six controlled conversations

with a research assistant (Study 1), and six practical context conversations with a caregiver (Study 2).

Spontaneous AAC device use in the home is tracked for six months following Study 2 conversations.

This project provides scientific data that influences management guidelines to improve daily conversational functioning of persons with degenerative language loss secondary to moderate Alzheimer’s

disease and PPA so that they may: (1) express their own needs and desires; (2) reduce care giving costs

by facilitating communication between caregivers and their charges; and (3) increase quality of life for

both caregivers and their charges with dementia.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-53

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Tennessee

Appropriate Directional Hearing Aid Switching in School Age Children

Vanderbilt University School of Medicine

Vanderbilt Bill Wilkerson Center for Otolaryngology and Communication Sciences

1215 21st Avenue South, Room 8310

Nashville, TN 37232-8242

todd.a.ricketts@vanderbilt.edu

Principal Investigator: Todd A. Ricketts, PhD

Public Contact: 615/936-5258; Fax: 615/936-5013

Project Number: H133G060012

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 06 $150,000; FY 07 $150,000; FY 08 $147,564; FY 09 (No-cost extension

through 10/31/2010)

Abstract: This project defines and demonstrates a Personal Audio Information Service (PAIS) - a new

mainstream system that expands the lifeline services currently offered to the visually impaired through

audio information services (AIS) by automatically assembling a selection of locally relevant, customized audio content from current AIS broadcasts. The PAIS system combines the established framework

of audio information services with the new programming flexibility that is afforded by HD Radio (the

new FCC-sanctioned standard for digital radio broadcasting), creating a powerful on-demand media

tool that will substantially improve media access for millions of print-impaired American consumers.

Consumer-selected media may include local digital radio, live-read newspaper feeds, books on demand, and targeted newsfeeds. These may be organized and navigated using topic lists and other userdefined organization schemes. The project: (1) develops efficient audio interfaces for selecting, navigating, and listening to content; (2) develops effective systems for tagging, subdividing, and collecting

topic-based content; (3) develops and demonstrates a full scale PAIS system in a real world broadcast

pilot; and (4) documents and publishes recommended best operating practices for audio information

service providers and consumer electronics manufacturers to fully deploy PAIS technologies. A new

component of work undertaken by NPR in this project (with IAAIS agreement) is to design the PAIS

system to maximize interoperability with potential podcast and other IP-enabled delivery methods.
3-54 NIDRR Program Directory FY 2009 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

West Virginia

Making Small Visual Displays Accessible to People with Vision Loss

American Foundation for the Blind

949 Third Avenue, Suite 200

Huntington, WV 25701

muslan@afb.net

www.afbtech.org

Principal Investigator: Mark Uslan

Public Contact: 304/523-8651; Fax: 304/523-8656

Project Number: H133G090026

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 09 $199,687

Abstract: This project assesses the accessibility and usability of small visual displays (SVDs) for use

by people with vision loss. SVDs can be found in products as diverse as cell phones, personal digital

assistants, photocopiers, fax machines, kitchen and laundry appliances, home entertainment devices,

exercise equipment, and diabetes self-management technology. Individuals with vision loss face severe

limitations in using such products safely and effectively because the visual displays lack accessibility

features. The “readability” of an SVD depends on two aspects – the ability of the visually impaired

person to discern details and the ability of the screen to generate them. These two aspects can be

quantified. Goals of this project include: (1) a replicable, and potentially commercializable, optics lab

for measuring SVDs; (2) a set of standards for the design of SVDs relative to human contrast sensitivity function which will be commercially valuable for product developers; and (3) a searchable, tabular

analysis of the accessibility and usability of SVDs used in approximately 250 products with informative guidance for consumers to use in inquiring about accessibility of products with SVDs.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-55

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Development of Dynamic Pedorthosis for Improving

Clubfoot Correction

Medical College of Wisconsin

Department of Orthopaedic Surgery

P.O. Box 1997, Suite C360

Milwaukee, WI 53201

xcliu@mcw.edu

Principal Investigator: Xue-Cheng Liu, PhD

Public Contact: 414/337-7323; Fax: 414/337-7337

Project Number: H133G060142

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $150,000; FY 07 $150,000; FY 08 $150,000

Abstract: The purpose of this development project is to use advanced technologies to establish a new

process to develop a customized dynamic pedorthosis for children with clubfoot. Researchers evaluate

children with and without clubfoot to obtain dynamic plantar pressure using EMED Pressure System

and three dimensional geometry from X-ray or CT scan. Based on this information, a computer model

of the dynamic pedorthosis is developed using computer-aided design (CAD) and finite element

modeling (FEM). The analysis of FEM simulates walking with different percentage of body weight.

The customized CAD model is used to construct a negative mold of the pedorthosis using Solid

Freeform Fabrication, a rapid prototyping technique. Next, the pedorthosis is constructed from the

negative mold. Each customized pedorthosis constructed using this approach will have different

material inserts as required to correct the abnormal plantar pressure resulting from the clubfoot deformity. Finally, five patients with their customized dynamic pedorthosis are followed clinically including

X-ray, in-sole plantar pressure distribution study, and functional outcome analysis. This information is

used to evaluate the pedorthosis for reliability and effectiveness, and if needed, used to modify the

current pedorthosis.
3-56 NIDRR Program Directory FY 2009 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Clinical Reliability and Validity of a Foot Model: Assessing Efficacy

and Functional Outcome with Orthotic Intervention in Children with

Cerebral Palsy

Medical College of Wisconsin

Department of Orthopaedic Surgery

P.O. Box 1997, Suite C360

Milwaukee, WI 53201

xcliu@mcw.edu

Principal Investigator: Xue-Cheng Liu, PhD

Public Contact: 414/337-7323; Fax: 414/337-7337

Project Number: H133G060155

Start Date: January 01, 2007

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $150,000; FY 07 $150,000; FY 08 $150,000

Abstract: Equinovalgus and equinovarus are the most common foot and ankle abnormalities reported

in children with cerebral palsy (CP). Orthotic intervention is frequently prescribed for children with CP

to improve their standing, walking, and every day function. However, limited evidence exists to

support the impact of these devices to prevent deformities or improve function. Specifically, no longterm functional outcome studies support use of different orthoses recommended by existing foot

models. This study first validates a six-segment-foot model with MRI data and assesses clinical reliability of the model with physical examination and video-taped observational gait analyses in children with

CP. Second, this study assesses the efficacy of four types of orthoses and determines their benefits

following a two year period, using the six-segment-foot model, Gross Motor Function Measure, and

Pediatric Evaluation of Disability Inventory.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-57

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

California

Hearsay: A Context-Driven Assistant Browser for

Non-Visual Web Access

Charmtech

21701 Alcazar Avenue

Cupertino, CA 95014

sdchawla@yahoo.com

Principal Investigator: Sunil Chawla

Public Contact: 408/368-4833

Project Number: H133S090065

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 09 $75,000

Abstract: This project engineers and implements Hearsay, a context driven, non-visual web browser

that enables users with visual impairments to browse efficiently and perform transactions on the web

allowing them to participate fully in the growing web-based economy, activities for education, commerce, and health care in the community. Hearsay combats the information overload problem experienced by individuals with visual impairments when using extant screen readers, which read web pages

sequentially to users. Rather than having to wade through enormous amounts of unnecessary information irrelevant to the task at hand, Hearsay users are presented with page content in the order of relevance. Using a variety of techniques, Hearsay analyzes and organizes page content semantically from

processing local link contexts, through shallow knowledge bases of relevant concepts, to automated

construction of transaction models. Hearsay also provides special support for users performing transactions on the web, such as purchasing items, paying bills, or registering for services. Furthermore, for

repetitive browsing tasks, Hearsay allows users to create and retrieve personalized content. Hearsay

supports an increasing sophistication of semantic content processing and provides easy incorporation

of third-party voice generators and input/output devices.
3-58 NIDRR Program Directory FY 2009 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

California

Development of a Global Access Information Navigation (GAIN) for

Persons Who Are Blind or Have Low Vision

Sendero Group, LLC

429 F Street, Suite 4

Davis, CA 95616

mikemay@senderogroup.com

Principal Investigator: Michael May

Public Contact: 530/757-6800; Fax: 530/757-6830

Project Number: H133S090026

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 09 $74,963

Abstract: This project produces a dynamic and accessible public transportation information device,

the Global Access Information Navigator (GAIN) system. This system is designed to collect, enhance,

and share location-based information to empower an individual who is blind or visually impaired with

relevant information for use in determining the optimal sequence to efficiently utilize available public

transportation options. For example, rather than having to ask a passerby when Bus 12 leaves and

where to buy the ticket, the user’s accessible GPS device presents schedule and map information

associated with that bus terminal. With the press of a couple of buttons, the bus schedule is displayed

and the terminal layout described to the user.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-59

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Colorado

CTAS: A Self-Directed Computer Technology Assessment System for

Students and Adults with Intellectual Disabilities

AbleLink Technologies, Inc.

618 North Nevada Avenue

Colorado Springs, CO 80903

steve@ablelinktech.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S090012

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 09 $75,000

Abstract: This project develops and evaluates the Computer Technology Assessment System (CTAS),

a self-directed assessment system for ongoing evaluation of computer skills and abilities of individuals

with intellectual disabilities to foster successful technology use. This is accomplished through field

evaluation of a CTAS prototype that is developed and tested during the pilot study. Forty students are

solicited for participation in the study comparing the results of CTAS assessment with traditional

computer skills assessment results conducted previously by assessment professionals. Such assessments are considered an essential pre-requisite to equipping individuals with the right technology

solutions given their needs and abilities. There are currently no assessment tools that address the

unique computer use and interface needs of individuals with intellectual disabilities.
3-60 NIDRR Program Directory FY 2009 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Colorado

LiveWire: A Context-Aware, Location-Based Wireless Activity Support

System to Facilitate Independence for Individuals with Intellectual

Disabilities

AbleLink Technologies, Inc.

618 North Nevada Avenue

Colorado Springs, CO 80903

dan@ablelinktech.com

Principal Investigator: Daniel Davies

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S090027

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 09 $75,000

Abstract: This project develops an Internet-based system for managing and delivering “on demand”

activity prompts to individuals with intellectual disabilities. Task supports presented with pictures,

audio, and video prompts are delivered via wireless networking and presented to individuals with

cognitive disabilities via a thin-client Task Player application that can run on a wide variety of desktop

and mobile devices. This enables step-by-step task prompting to be made available to individuals using

a consistent interface in any environment that has a wireless Internet access point. The project develops

a prototype system and conducts a pilot study to access the technical merit and feasibility of this

approach for facilitating independence.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-61

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Florida

Mobile Math Signing Dictionary for iPod Touch

VCom3D, Inc.

3452 Lake Lynda Drive, Suite 260

Orlando, FL 32817

jasonh@vcom3d.com

Principal Investigator: Jason C. Hurdich

Public Contact: 407/737-7310; Fax: 407/737-6821

Project Number: H133S090074

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 09 $74,997

Abstract: This project develops and evaluates a Mobile Signing Math Dictionary (MSMD) that

provides American Sign Language and Signed English definitions for Apple’s touch-screen iPod.

Using the proof-of-concept, the applicant implements and tests different user interfaces for handheld

devices. These designs are evaluated in classrooms at grade levels three, five, and seven in at least five

schools in locations throughout the United States. In addition to animated signing, the MSMD features

the ability to include equations, charts, and visual representations of word problems that the animated

character can refer to and describe in sign. The mobile version of the dictionary provides mobility and

independence that leads to opportunity-based learning inclusions, on field trips, or while studying

anytime and anywhere.
3-62 NIDRR Program Directory FY 2009 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Florida

Increasing Mobility and Maneuverability of Wheelchairs for Indoor,

Transportation, and Recreational Activities

Rehabilitation Ideas-Wheelchair Products and Accessories, Inc.

3802 Spectrum Boulevard, Suite #112

Tampa, FL 33612

steve@rehabideas.com

Principal Investigator: Stephen Sundarrao

Public Contact: 813/600-3058; Fax: 813/436-9359

Project Number: H133S090106

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 09 $75,000

Abstract: Wheelchairs and other mobility devices are designed for specific environments (flat, nonconfined spaces) and have limited ability to negotiate certain outdoor environments, uneven terrain

(nature areas), and soft terrain (beaches). As a result, users are either excluded from outdoor activities

or they rely on assistance to transfer to a secondary, environment-specific chair. This project designs a

unique base platform powered by the wheels of a power wheelchair which allows the user to access

outdoor recreational areas that are typically not accessible in a standard wheelchair, including beaches

and parks. The primary advantages are that the user does not need to transfer from his/her existing

wheelchair and there is no auxiliary power needed. Project objectives include: (1) evaluating the

feasibility and usability of the platform to enhance the mobility and maneuverability of wheelchairs in

multiple environments; (2) testing the design, effectiveness, and application of two designs in three

environments (beach/sand environment, gravel/rough terrain, and slopes and gradients); and (3) analyzing the impact of the designs and developing a commercialization plan.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-63

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Indiana

A Navigation and Object-Location System to Assist Blind and LowVision Individuals in Indoor Environments

CreateAbility Concepts, Inc.

5610 Crawfordsville Road, Suite 2401

Marion, IN 46224

steve@createabilityinc.com

www.createabilityinc.com

Principal Investigator: Stephen M. Sutter

Public Contact: 317/484-8400; Fax: 317/484-8401

Project Number: H133S090099

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 09 $75,000

Abstract: This project demonstrates the technical merit, feasibility, and cost-effectiveness of combining ground-breaking Radio Frequency Identification (RFID) technology with an innovative approach

and state of-the-art software to deliver a system capable of removing barriers in vocational settings.

This system assists individuals with disabilities to orient themselves and safely navigate in vocational

environments. The system also is designed to assist individuals in finding and identifying items and

objects within their environment. Specific project objectives include: (1) determining end user requirements, (2) developing a proof-of-concept prototype of the system, and (3) evaluating the utility of the

prototype with actual individuals who are blind or visually impaired. The system is also designed to

assist individuals in finding and identifying items and objects.
3-64 NIDRR Program Directory FY 2009 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Indiana

Variable Position Mid-Wheel Drive System for Power Wheelchairs

Criterion Health, Inc.

6321 Tanglewood Road

Terre Haute, IN 47802

bobl@criterionhealth.net

Principal Investigator: Robert M. Levy

Public Contact: 812/894-2120

Project Number: H133S090013

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 09 $75,000

Abstract: This project designs, constructs, and evaluates a concept model based on current mid wheel

designs. The concept model uses a variable position drive wheel system that can move forward or

backward from the mid-wheel position using a simple mechanical system to change the position of the

drive wheels. A series of five structured tests for maneuverability and/or stability are used to compare

performance as a function of placement of the drive wheels. The feasibility of this concept model is

based on demonstrating that a variable position drive wheel system optimizes performance under a

greater variety of terrain and environmental conditions compared to a single position drive wheel

system.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-65

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Massachusetts

Clothing Worn by Individuals with Visual Impairments as a HandsFree Common Platform for GPS WayFinding Systems and Obstacle

Avoidance Systems

Science, Math and Engineering, Inc.

45 Manning Road

Billerica, MA 01821

burns@aerodyne.com

Principal Investigator: Michael L. Burns

Public Contact: 978/663-9500; Fax: 978/663-4918

Project Number: H133S090064

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 09 $75,000

Abstract: This project develops a clothing based platform for Global Positioning Satellite (GPS)

wayfinding systems used by individuals with visual impairment. The clothing platform allows for the

integration of GPS wayfinding systems with clothing-based electronic obstacle avoidance systems.

The goal is to provide the user wayfinding information integrated with obstacle avoidance information

on the hands-free platform of the user’s clothing. Global wayfinding and local obstacle avoidance

information complement one another thereby increasing accessibility and integration of the user into

the community.
3-66 NIDRR Program Directory FY 2009 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Massachusetts

Cooling System for Multiple Sclerosis Patients

Aspen Systems, Inc.

184 Cedar Hill Street

Marlborough, MA 01752

scasey@aspensystems.com

Principal Investigator: Steve Casey

Public Contact: 508/281-5322; Fax: 508/480-0328

Project Number: H133S090061

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 09 $74,713

Abstract: This project develops a small mobile personal cooling system that can be worn conveniently

by individuals with heat-related disabilities. The successful development of this mobile technology: (1)

supports access, promotes integration, and facilitates the independence of individuals with disabilities

in the workplace and educational settings, and during recreational activities; (2) provides increased

freedom and independence not only to individuals with multiple sclerosis but also to other disability

populations; and (3) has further applicability for workers wearing protective equipment and/or in warm

work environments, including workers in commercial and industrial settings, first respondent mission

arenas, law enforcement, and the military.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-67

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Minnesota

A Display Reader for the Vision Impaired

Advanced Medical Electronics Corporation

6901 East Fish Lake Road, Suite #190

Maple Grove, MN 55369

ghavey@ame-corp.com

Principal Investigator: Gary D. Havey

Public Contact: 763/463-4814; Fax: 763/463-4817

Project Number: H133S090069

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 09 $75,000

Abstract: This project develops an electronic display reader, a software application that takes advantage of current and developing, “smart phone” technology. Current and future smart phones used by

persons who are blind/visually impaired may be adapted to perform the application of real time reading

of electronic displays. The advantage of this approach is that the software application can run on

equipment that the user already owns and is presently using for communication and other applications.

By leveraging a platform that is familiar and able to serve multiple purposes, the design avoids some

shortcomings common in the development of adaptive technology. Integration of the applicant’s

software with off-the-shelf hardware may potentially address a major unmet need but also significantly

impact acceptance by individuals with disabilities.
3-68 NIDRR Program Directory FY 2009 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Minnesota

Transportation Assistant for the Cognitively Impaired

Koronis Biomedical Technologies Corporation

6901 East Fish Lake Road, Suite #190

Maple Grove, MN 55369

plichter@koronisbiotech.com

Principal Investigator: Patrick A. Lichter

Public Contact: 612/730-1091; Fax: 763/463-9000

Project Number: H133S090055

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 09 $75,000

Abstract: This project develops and evaluates the utility of a cognitive aid that takes advantage of the

computing power and GPS location determination capabilities of inexpensive powerful third-generation cell phones providing location-sensitive transportation assistance. The cognitive assistant aids

users by utilizing ubiquitous cell phone technology as the foundation of an advanced assistive device

after the installation of the navigator software. Software is developed for mobile devices to provide

location-based reminders, mistake detection, and remediation allowing individuals with cognitive

disabilities to utilize public transportation systems more effectively and efficiently. This cognitive aid

compensates for memory and other cognitive disorders via reminders or memory cues offered through

an interface tailored to the individual, facilitating mobility with greater confidence and safety in urban

settings.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-69

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

New York

Early Math Intervention Program for Improved Comprehension and

Communication in Problem Solving for Students with

Learning Disabilities

Learnimation, LLC

55 Washington Street, Suite 454

Brooklyn, NY 11201

sarah@learnimation.com

Principal Investigator: Sarah Manning

Public Contact: 212/361-3706

Project Number: H133S090104

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 09 $74,991

Abstract: This project designs, builds and validates a universally-designed early math and science

intervention gesture training program for pre-school through early middle school students with learning

disabilities, their teachers and caregivers. Taking advantage of widely available technologies students,

teachers, and caregivers are provided with training and practice in powerful new techniques via webbased software environment. Student training includes both direct instruction and access to peermediated instruction using agents in a virtual environment. The software application expands the

access of students with learning disabilities to mathematics curricula and significantly improves the

capacity of mainstream teachers and their aides to provide differentiated instruction to assess students

with learning disabilities in reaching their full potential in mathematics.
3-70 NIDRR Program Directory FY 2009 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Oklahoma

Haptic Feedback Improvements for Prostheses

OrthoCare Innovations, LLC

800 Research Parkway, Suite 310

Oklahoma City, OK 73104

Principal Investigator: Pravin Chaubey

Public Contact: 405/271-2466; Fax: 405/271-2467

Project Number: H133S090044

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 09 $74,098

Abstract: This project optimizes haptic system design parameters and more thoroughly evaluates the

impact of a vibratory haptic system for prosthetics. Objectives include: (1) building a hardware and

software test bed for non-invasive voluntary control of a prosthetic hand with vibratory haptic feedback, (2) optimizing the factor application, (3) assessing the effectiveness of factor vibratory feedback

on cognitive loading interpretations, and (4) assessing perceptions of subjects regarding the actual use

of haptic feedback. Specifically, Objective One involves the construction of a controlled box. Fingertip

sensors on the thumb and index finger of a myoelectric arm convey pressure data to a microprocessor.

Using a mapping algorithm, the processor generates a corresponding waveform that is sent to feedback

devices (tactors) placed on the skin of the upper arm. Objectives Two through four test the vibratory

feedback on seven below-elbow amputees. Objective Two determines the best tactor location, vibration waveform, and time duration until deterioration in skin sensitivity occurs by measuring how well

the subjects can sense a change in vibration frequency (as identified in previous work as a spectrum of

interest). This information assists in the determination of when a resting period from vibrotactile

stimulation is required to avoid over-stimulation of the skin. Objective Three tests the ability of the

vibrotactile feedback to provide information on grasping force with the myoelectric hand. The myoelectric hand is controlled by the contraction intensity of the wrist extensor and flexor muscles as

detected by EMG electrodes. Trials use the myoelectric hand to grasp a plush ball at forty percent,

sixty percent, and eighty percent of the subject’s maximum grasping force. Trials, using vibrotactile

feedback, vibrotactile, and visual feedback, and no feedback are compared. Objective Four requires

the subjects to rate the system in terms of level of comfort, accuracy, user friendliness, level of discomfort, and overall usefulness in grasping activities.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-71

Small Business Innovation Research (SBIR), Phase I Small Business Innovation Research (SBIR), Phase I

Utah

New Electro-Hydraulic Foot Prosthesis

Motion Control, Inc.

115 North Wright Brothers Drive

Salt Lake City, UT 84116

harold@utaharm.com

Principal Investigator: Harold H. Sears, PhD

Public Contact: 801/326-3434; Fax: 801/978-0848

Project Number: H133S090067

Start Date: October 01, 2009

Length: 6 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 09 $75,000

Abstract: This project develops an electronic-controlled version of the advanced hydraulic foot/ankle

(MCI Foot) demonstrating the feasibility of the automatic adjustment of resistance throughout the range

of motion. The advanced MCI Foot, especially the automatic-controlled version, contributes to the

function of the prosthesis wearer, resulting in advanced and more natural walking benefits. The project

objectives include: (1) Implementation of electric servo-valves into the existing foot-ankle design.

Manual valves have been developed at present, and in preliminary testing, shown to be successful at

setting the foot wearer’s preference for dorsi-flexion and plantar flexion; (2) Development of sensor for

ankle position, inclination, temperature, and load for integration into the ankle electronic Controller.

The sensors utilize a rugged design, for long-term reliable usage in the foot, and small size to fit within

the anatomical shape of the foot; (3) Implementation of an algorithm for ankle control by microprocessor. The automatic control of ankle resistance depends upon the variable of position, inclination, and

load, indicating the point in the gait cycle in which the walker’s step is taken. The temperature is

automatically compensated for as the hydraulic fluid warms and changes viscosity. Success in the

function of the auto-controller is evaluated in-house, in the Foot Testing Center.
3-72 NIDRR Program Directory FY 2009 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Colorado

ATLAS: An Accessible Testing, Learning, and Assessment System for

Individuals with Intellectual Disabilities to Facilitate Inclusion and

Access to the General Curriculum

AbleLink Technologies, Inc.

618 North Nevada Avenue

Colorado Springs, CO 80903

dan@ablelinktech.com

Principal Investigator: Daniel Davies 719/592-0347

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S080066

Start Date: October 01, 2008

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 08 $250,000; FY 09 $250,000

Abstract: This project builds upon previous research to fully develop and field test the ATLAS

system, an innovative system that facilitates access to tests and surveys for individuals with intellectual

and cognitive disabilities. ATLAS is a portable testing and assessment system that can be used by

teachers and evaluators to create accessible, self-paced tests and evaluations for students and adults

with intellectual disabilities which can then be completed by the individual in a self-directed manner

using a portable computer device. The ATLAS system promotes the access of students with intellectual

and cognitive disabilities to the general education curriculum by facilitating their participation in testing

activities in the regular classroom. The ATLAS System addresses the important educational needs of

individuals with intellectual and cognitive disabilities by facilitating independent access to tests and

surveys for a significant population of American citizens using portable technology.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-73

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Florida

Signing Science Pictionary for Young Learners Who are Deaf or

Hard of Hearing

VCom3D, Inc.

3452 Lake Lynda Drive, Suite 260

Orlando, FL 32817

jasonh@vcom3d.com

Principal Investigator: Jason C. Hurdich

Public Contact: 407/737-7310; Fax: 407/737-6821

Project Number: H133S090134

Start Date: October 01, 2009

Length: 24 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 09 $248,862

Abstract: In Phase II, this project continues to develop and evaluate the Signed English Signing

Science Pictionary (SSP) software. SSP has at least 700 terms for handheld devices for use in grades

K-3 and is used to promote team building and communication of scientific ideas for children with

hearing disabilities. SSP versions are created for handheld media players, such as the Apple iPod

Touch, as well as for selected emerging multifunction devices, such as iPhone, Blackberry, and Sidekick. This project also develops new signing characters, including animal and fantasy characters that

are more appropriate to a younger age group than the SSP targets. The SSP may be made available for

the Apple iPod Touch and for at least one additional mobile device, and sold through popular application channels such as Apple’s iTunes store.
3-74 NIDRR Program Directory FY 2009 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Illinois

A Low-Cost Portable/Wearable Device for Intelligent Stretching and

Movement Training of Hypertonic Forearm in Stroke with Outcome

Evaluation

RehabTek, LLC

2510 Wilmette Avenue

Wilmette, IL 60091

rehabtek_bo@yahoo.com

Principal Investigator: Yupeng Ren 847/024-1659

Public Contact: 847/024-1659; Fax: 847/853-8380

Project Number: H133S080076

Start Date: October 01, 2008

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 08 $239,013; FY 09 $260,797

Abstract: This project develops a wearable/portable robotic device, IntelliStretch, to perform therapeutic rehabilitation of the arm with the following three integrated steps: (1) stretching a spastic/stiff joint

to its extreme position under intelligent control to loosen the stiff joint, (2) voluntary movement training

using virtual reality games interfaced with assistance/resistance control when needed, and (3) quantitative outcome evaluation. The device is low cost and portable so that patients can use the device conveniently and frequently in a local clinic under monitoring of a clinician or at home with initial instruction/training from a clinician. IntelliStretch is first modified for wearable design to improve portability

and functionality. Second, in order to motivate/facilitate patients in motor-function recovery, voluntary

movement training by playing virtual reality games is added. Finally, the outcome of the robotic

treatment is evaluated quantitatively in terms of the biomechanical and neuromuscular properties of the

joint. The IntelliStretch device facilitates the delivery of healthcare services to remote locations, such as

patients’ homes and local clinics, and, thus enables an increased number of patients to receive effective

treatment and outcome evaluation conveniently while enjoying the games.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-75

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Indiana

Hearing Companion: Handheld Portable Sound Identification and

Critical Alerting Functionality for People Who Are Deaf or Have

Hearing Loss

CreateAbility Concepts, Inc.

5610 Crawfordsville Road, Suite 2401

Indianapolis, IN 46224

steve@createabilityinc.com

www.createabilityinc.com

Principal Investigator: Stephen M. Sutter

Public Contact: 317/484-8400; Fax: 317/484-8401

Project Number: H133S080075

Start Date: October 01, 2008

Length: 24 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 08 $250,000; FY 09 $250,000

Abstract: Based on previous research, this project develops and demonstrates the HearingCompanion

which: (1) automatically recognizes specific sounds in the environment on a pocket-sized device; and

(2) alerts the user on their mobile device via vibration, images, and captions that identify these recognized sounds. This efficient, wearable system utilizes existing and developing technology, improving

the ability of a person who is deaf to function more naturally in a work or school environment. Phase II

project goals include: (1) enhance the Hearing Companion device and application; (2) expand the

number of mobile communication devices supported; (3) perform an extended usability evaluation of

the device in a range of activities in vocational, public, and daily living scenarios; and (4) prepare for

transition into commercialization. The portable handheld system significantly enhances the user’s sense

of safety, security, and independence by providing a means of sound recognition heretofore unavailable to these individuals. Moreover, the personal devices provide a convenient and powerful tool for

mobile information and communication.
3-76 NIDRR Program Directory FY 2009 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Minnesota

Wireless Wrist Device to Alert the Deaf of Sounds and Events in

Their Environment

Advanced Medical Electronics Corporation

Engineering AME

6901 East Fish Lake Road Suite #190

Maple Grove, MN 55369

gseifert@ame-corp.com

www.ame-corp.com

Principal Investigator: Greg Seifert 763/463-4814

Public Contact: 763/463-4814, ext. 101; Fax: 763/463-4817

Project Number: H133S080068

Start Date: October 01, 2008

Length: 24 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 08 $250,000; FY 09 $250,000

Abstract: This project develops a wireless system to alert individuals who are deaf to critical sounds

and events in their environment. This efficient, wearable system utilizes existing and developing

technology, improving the ability of a person who is deaf to function more naturally in a work or

school environment. The system uses a consumer product called a Bluetooth wristwatch, which is

essentially a wireless, wrist-worn computer interface and display. The Bluetooth watch serves as a

hands-free universal interface to a network of sensors providing data about the surrounding environment and as a convenient interface for text messaging. The text messaging feature is significant since

text messaging is common among individuals who are deaf and has also increased communication

between individuals who are deaf and individuals who are hearing.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-77

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Minnesota

Connectivity to Modern Electronics for the Hearing Disabled

Advanced Medical Electronics Corporation

6901 East Fish Lake Road, Suite 190

Maple Grove, MN 55369

ghavey@ame-corp.com

Principal Investigator: Gary D. Havey

Public Contact: 763/463-4814; Fax: 763/463-4817

Project Number: H133S090130

Start Date: October 01, 2009

Length: 24 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 09 $223,247

Abstract: During Phase II, this project continues to develop and test a wireless module system for

interconnecting hearing aids with consumer electronic devices. The project uses the micro-behind-theear hearing aid module as a development platform. The goal is to provide a consumer electronics addon module (audio digitizer and transmitter module) compatible with nearly all future wireless hearing

aids. This new module allows hearing-aid users to directly receive high-quality sound data from cell

phones, televisions, computers, MP3 players, classroom PA systems, and so forth.
3-78 NIDRR Program Directory FY 2009 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

New York

Audio-Tactile Interactive Computing with the Livescribe Pulse Pen

Touch Graphics, Inc.

330 West 38th Street, Suite 900

New York, NY 10018

sl@touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 212/375-6341; Fax: 646/452-4211

Project Number: H133S090137

Start Date: October 01, 2009

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 09 $249,945

Abstract: This Phase II project develops a system for delivering audio-tactile computer applications

that are accessible to high school and college students who have print disabilities. The applications

include: a scientific calculator, a periodic table of elements, subway maps, and a game. In each application, the user touches the tip of the Livescribe Pulse Pen to raised-line and textured (tactile) images

printed on plastic film. As the user does this, the audio system for the pen plays spoken descriptions of

features he/she touches. Tests are conducted with human subjects at two sites and expose students with

visual impairments to each application to study their performance and actions while using the system.

The vibrations and other haptic sensations delivered into the user’s hand as the pen’s tip is guided

through a variety of grooves, channels, dimples, and punched holes bring an interactive richness and

control without adding to tactile graphical clutter. By overlaying tactile images with additional information that is relatively transparent to fingertip touching, this displays more information without increasing cognitive load, thereby improving comprehension of potentially complex figures.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-79

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Oregon

My ScrivenerTM Innovative Technology to Enhance

Fine Motor Function

Obslap, Inc.

3130 Summit Sky Boulevard

Eugene, OR 97405

obslap.research@comcast.net

Principal Investigator: Susan Palsbo

Public Contact: 541/505-7591; Fax: 541/505-759,*51

Project Number: H133S070082

Start Date: October 01, 2007

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 07 $262,565; FY 08 $233,594; FY 09 (No-cost extension through 3/31/10)

Abstract: This project builds upon current research, development, and evaluation work for a prototype

special education intervention called My ScrivenerTM. My ScrivenerTM is based on emerging research

demonstrating that computer-assisted motion training can stimulate the growth of neural connections.

The system uses a force-feedback peripheral haptic unit attached to a personal computer for “sense of

touch” instruction in printing, through repetitive-motion, for children with fine-motor skill deficits.

During Phase II, a prototype is being developed and clinical trials conducted to demonstrate the feasibility of visible improvement in the child’s fine motor and handwriting skills. My ScrivenerTM is

anticipated to significantly improve proprioceptive awareness and hence, writing, as measured by

accuracy and speed for children with development coordination disorders arising from attention deficits, autism, mild cerebral palsy, intellectual disabilities, or unspecified learning disabilities.
3-80 NIDRR Program Directory FY 2009 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Oregon

Why Go It Alone? The Use of Public Resources to Enhance Computer

Accessibility for Individuals with Intellectual Disabilities

Life Technologies, LLC

P.O. Box 11306

Eugene, OR 97440

foxl@ohsu.edu

Principal Investigator: Lynn Fox 503/725-3188

Public Contact: 503/725-3188

Project Number: H133S070096

Start Date: October 01, 2007

Length: 24 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 07 $244,206; FY 08 $253,510; FY 09 (No-cost extension through 3/31/2010)

Abstract: This Phase II SBIR continues the design and development of the Personal Access Computer Key, a portable USB interface for the CogLink email program for people with cognitive disabilities. The Personal Access Computer Key (PACK) is a modified USB (Universal Serial Bar) drive that

circumvents these barriers by providing an inexpensive portable computing environment. The PACK

is designed to accommodate adapted software that can be launched on personal computers or on

publicly accessible, updated computers maintained by on-site staff. Four participants with acquired

cognitive impairments successfully used the PACK to launch our CogLink email program on public

computers at senior centers and residential communities. Unfortunately, the PACK drive could not be

used on all public computers (e.g. public library computers) due to security issues. In Phase II, an

incremental design and participatory research process is employed to address PACK accessibility

barriers. Further development includes: (1) a website allowing clinicians and care providers of persons

with cognitive impairments to identify appropriate technology for computing; (2) customizing a PACK

desktop that hides the Windows operating system from the user, and (3) simplifying a web portal for

Internet access. The feasibility of using the PACK drive to launch the CogLink email program is

demonstrated in Phase I. Phase II focuses on the development of technology to support access and

promote the integration of individuals with disabilities in multiple community settings. Phase II activities include: (1) publishing results of a survey of public computing environments that comprehensively

assesses availability and accessibility of public terminals and wireless access; (2) expanding PACK

software applications; (3) developing a web portal for access to applications targeted to individuals

with cognitive impairments and their care providers; and (4) developing and launching a web application that support people can use to determine the optimum computing environment and hardware for a

person with cognitive impairment. A focus on collaboration between experts in computer science and

rehabilitation ensures successful deployment of hardware and software packages and fosters widespread distribution during Phase III.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-81

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Oregon

Television Assisted Promotion (TAP): Enhancing Rehabilitation

Outcomes with Familiar Technology

Life Technologies, LLC

P.O. Box 11306

Eugene, OR 97440

rik@coglink.com

Principal Investigator: Richard Lemoncello 541/915-8472

Public Contact: 541/915-8472; Fax: 541/346-5373

Project Number: H133S080077

Start Date: October 01, 2008

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 08 $251,000; FY 09 $249,000

Abstract: Based on previous research, this project (1) refines the TV Assisted Prompting (TAP)

system hardware and software while expanding its utility to new rehabilitation domains; and (2)

continues to employ an incremental design process, partnering with patients, care providers, and

therapists to design and evaluate a user-friendly system. The TV Assisted Prompting (TAP) system

offers a simple alternative for delivering home program content through a patient’s own TV, prompting

and motivating them to initiate and complete home therapy programs. In this second phase, the TAP

system is refined into a flexible, less expensive system for commercialization. Technical and rehabilitation development expands upon the current system features to develop user-friendly interfaces for

clinicians and patients which facilitate the use of the TAP system in a variety of rehabilitation programs. The TAP system benefits the rapidly growing population of individuals with cognitive disabilities in need of on-going rehabilitation to maximize their progress post-injury.
3-82 NIDRR Program Directory FY 2009 - Technology for Access and Function

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Pennsylvania

Low Vision Lime: Solution for Low Vision Musicians to Read, Perform,

Write, and Print Music Notation

Dancing Dots Braille Music Technology, L.P.

1754 Quarry Lane, P.O. Box 927

Valley Forge, PA 19482

info@dancingdots.com

www.dancingdots.com

Principal Investigator: William McCann

Public Contact: 610/783-6692

Project Number: H133S070089

Start Date: October 01, 2007

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 07 $250,150; FY 08 $249,865; FY 09 (No-cost extension through 12/15/09)

Abstract: This project evaluates and defines the Lime notation software, a self-contained, music

reading and writing system that allows low vision musicians to independently accomplish typical tasks

important to performers and composers with normal vision. It enables performers and composers with

low vision to read/perform and write/revise notation, including accessible editing and printing. Specifically, the system allows for magnification that is up to 10 times the original image; displays magnified

notation on a flat-panel monitor mounted on a music stand using a combination of automatic and usercontrolled scrolling; adds specialized magnification of music notation, a custom scrolling mode, user

control of colors and contrast; integrates a touch tablet and stylus of manual markup; and expands the

implementation of MusicXML import/export to facilitate exchange with commercial notation software.

Project goals include: (1) refining and completing continuous scrolling display options; (2) completing

Lime’s integrated score enlargement and low vision feature set; (3) finalizing configuration and scripting of third-party magnification utilities; (4) measuring effectiveness of new features with a select

cross-section of musicians with low vision; (5) developing markup option for handwriting annotations

on scores; (6) expanding MusicXML import/export capability; and (7) measuring effectiveness with a

select cross-section of musicians with low vision.
NIDRR Program Directory FY 2009 - Technology for Access and Function 3-83

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Utah

Wireless EMG Preamp and Improved Mounting System

Motion Control, Inc.

115 North Wright Brothers Drive

Salt Lake City, UT 84116

harold@utaharm.com

www.utaharm.com

Principal Investigator: Harold H. Sears, PhD

Public Contact: 801/326-3434; Fax: 801/978-0848

Project Number: H133S070084

Start Date: October 01, 2007

Length: 24 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 07 $257,065; FY 08 $242,935; FY 09 (No-cost extension through 6/30/2010)

Abstract: This project develops a small, waterproof, Wireless EMG Preamp sensor for myoelectric

arm prostheses. The waterproof sensor transmits a digital signal via a wireless link, eliminating many

of the wires and connectors associated with arm prostheses, and allowing connection to modern roll-on

gel type liners (which maintain consistent and intimate contact with the wearer’s skin). The Wireless

EMG Preamp sensor is designed for use with popular mounting techniques, and improves the contact

of electrodes with the skin, reduces the wires that the prosthetist must install inside the socket, and

through digital signal processing, reduces the interference from rapidly-growing causes of EMG signal

problems, thus creating a benefit for both the wearers and prosthetists. The Wireless EMG Preamp

system enhances the practicality of myoelectric arm fittings by reducing breakdowns, and thereby

increasing the reliability of the day-to-day wearer’s control of the arm prosthesis.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Disability and Rehabilitation Research Projects .................................................................................. 14

Field Initiated Projects (FIPs) .............................................................................................................. 20

Small Business Innovation Research (SBIR), Phase II ....................................................................... 42

Participation and Community Living

NIDRR's focus on participation follows the stated purpose of independent living

programs to promote a philosophy of independent living, including a philosophy of

consumer control, peer support, self-help, self-determination, equal access, and

individual and system advocacy, in order to maximize the leadership, empowerment,

independence, and productivity of individuals with disabilities, and the integration

and full inclusion of individuals with disabilities into the mainstream of American

society. NIDRR sponsors research to improve knowledge of individual- and

societal-level factors that may serve as barriers to, or facilitators of, participation

among all people with disabilities.

NIDRR Program Directory FY 2009 - Participation and Community Living 4-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Personal Assistance Services (PAS) in the 21st Century

University of California, San Francisco

3333 California Street, Suite 455

San Francisco, CA 94118-0612

pas@ucsf.edu

www.pascenter.org

Principal Investigator: Charlene Harrington, PhD, RN; H. Stephen Kaye, PhD; Mitch LaPlante,

PhD; Robert Newcomer, PhD; 415/476-4030

Public Contact: 866/727-9577; 415/502-7190 (V); 415/502-5216 (TTY); Fax: 415/476-6552

Project Number: H133B080002

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 08 $850,000; FY 09 $850,000

Abstract: This rehabilitation research and training center focuses on: (1) improving access to Personal

Assistance Services (PAS) by individuals with disabilities; (2) improving the workforce to support

individuals with disabilities; and (3) understanding the complexities of the economics of PAS. This

project: (1) analyzes trends in the met and unmet needs for PAS in the United States, and the changing

demographics of the PAS population, and makes national and state projects of need; (2) investigates

the relationship between need and economic status for working age and older groups; (3) tracks and

analyzes trends in PAS participants, services, and expenditures and federal and state Olmstead-related

initiatives to expand PAS; (4) identifies state PAS policies and barriers to meeting the need for PAS;

and (5) analyzes state PAS intervention strategies and factors which impact the success of expanding

PAS services. Additionally, this project develops health promotion and educational tools, supports, and

interventions to improve the health of caregivers and PAS users; addresses the needs of children and

their family caregivers through focused research on the impact of family caregiving on employment;

and examines the needs and supports for aging minority caregivers and the amount and type of

caregiving provided by family or friends. Moreover, this project gathers and makes available existing

strategies, and develops a model approach for emergency PAS. While monitoring and analyzing trends

and demographics of paid PAS workforce, this project identifies and tracks state strategies to improve

PAS worker wages and benefits; monitors state trends in the number and diversity of PAS workers,

their compensation, turnover, and vacancies; and evaluates the effectiveness of state efforts. This

project also identifies and makes available comprehensive information about developments in state

training requirements for PAS workers and evaluation of these programs; collects and analyzes primary

data on workplace PAS, AT, and employment supports; and analyzes barriers to employment among

Medicaid PAS beneficiaries and whether AT lessens the need for PAS. Finally, the RRTC analyzes the

role of tax laws that affect reimbursement for PAS.
4-4 NIDRR Program Directory FY 2009 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Florida

Rehabilitation Research and Training Center for Children’s Mental

Health

University of South Florida

Florida Mental Health Institute

13301 Bruce B. Downs Boulevard MHC2335

Tampa, FL 33612-3807

kutash@fmhi.usf.edu

rtckids.fmhi.usf.edu

Principal Investigator: Robert Friedman, PhD 813/974-4640

Public Contact: Krista Kutash, PhD 813/974-4661 (V); Fax: 813/974-6257

Project Number: H133B040024

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $835,000; FY 05 $835,000; FY 06 $801,190; FY 07 $785,400; FY 08

$750,400; FY 09 (No-cost extension through 3/31/10)

Abstract: The Research and Training Center Children’s Mental Health conducts an integrated set of

research projects designed, in the short run, to enhance knowledge about effective implementation of

systems of care, and, in the long run, to make it possible for children with serious emotional disturbances to live, learn, work, and thrive in their own communities. The Center has developed a theory of

factors that contribute to effective implementation; within that theory is a strong emphasis on the

importance of understanding from a systemic perspective the interrelationship between the different

factors, and their relationship to the community culture and context in which a service delivery system

exists. The Center has a set of six interconnected research projects that use both quantitative and

qualitative methods, and are holistic in their focus, to further test and develop its theory. The Center

translates new knowledge from research into change in policy and practice through a targeted program

of training, consultation, technical assistance, publication, and dissemination. To support these efforts,

the Center maintains dissemination partnerships with a range of organizations committed to help

present research findings in formats well-suited for key audiences of state and local policy makers,

family organizations, researchers, and representatives of related service sectors.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center for Health and Function

Across the Lifespan of Individuals with Intellectual and Developmental

Disabilities

University of Illinois at Chicago

Department of Disability and Human Development

College of Applied Health Sciences

MC 626; 1640 Roosevelt Road

Chicago, IL 60608-6904

rrtcamr@uic.edu

www.rrtcadd.org

Principal Investigator: Tamar Heller, PhD 312/413-1647

Public Contact: Alan Factor, Associate Director 800/996-8845 (V); 312/413-1520 (V); 312/413-0453

(TTY); Fax: 312/413-1630

Project Number: H133B080009

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 08 $849,996; FY 09 $849,997

Abstract: This project provides a beneficial impact on the health and function of adults with intellectual and developmental disabilities (I/DD) and their families over their lifespan through a coordinated

set of research, training, technical assistance, and dissemination activities. Project goals include: (1)

improving health and function of adults with I/DD; (2) enhancing consumer-directed home and community-based long-term care; (3) reducing environmental barriers to health and community participation; and (4) developing an improved instrument to measure health and function in persons with I/DD

to facilitate assessment of outcomes in health promotion interventions. Projects relating to the promotion of health and function include: (1) examination of risk factors and age-related changes in health

status for adults with varying neuro-developmental conditions; (2) cohort study of health behaviors on

health and function, and interventions to improve balance and prevent falls for people with I/DD; and

(3) innovative approaches to community-based health promotion for people with I/DD. This RRTC

enhances caregiving supports and consumer direction through research on hiring practices in consumer

direction, interventions to improve consumer directed services, and family support interventions to

improve the health of minority families. Additionally, this project develops and tests tools used in

measuring the effectiveness and efficiency of home-based supports and in measuring the cognitive,

social, and physical accessibility of environments for people with I/DD.
4-6 NIDRR Program Directory FY 2009 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Measurement and

Interdependence in Community Living (RRTC/MICL)

The University of Kansas

Research and Training Center on Independent Living

1000 Sunnyside Avenue

Room 4089 Dole Center

Lawrence, KS 66045-7555

rtcil@ku.edu

www.rtcil.org/micl/

Principal Investigator: Glen W. White, PhD 785/864-4095

Public Contact: Pam Wilits 785/864-4095 (V); 785/864-0706 (TTY); Fax: 785/864-5063

Project Number: H133B060018

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 06 $649,839; FY 07 $649,908; FY 08 $649,686; FY 09 $649,909

Abstract: The goal of this project is to increase the independence and participation of people with

disabilities in their communities through the development and implementation of scientifically sound,

theoretically driven, and evidence-based interventions. Researchers accomplish this through six core

projects. Two research projects, one on community participation and a second on economic utility,

involve development of theory-driven measurement tools. The remaining four projects include the

application of these measurement tools as part of their methods and procedures. Two of these projects

are interventions and two develop model assessments. The first assessment project uses secondary

analysis to develop and implement a model for assessing the economic utility and health-related outcomes of participants enrolled in Home and Community-Based Service (HCBS) waivers. The second

assessment project evaluates the effects of different independent living advocacy-service models to

determine the comparative effectiveness of different models in increasing community participation. The

first intervention project examines the effectiveness of personal assistance services and enhanced

training to increase consumer participation in the community. The second intervention project is a

multisite study that examines the effects of a consumer-led grassroots approach in identifying and

removing barriers to increase community participation. Together, these projects represent a comprehensive, integrated, and robust set of activities that recognize that “disability” is an interaction between the

characteristics of an individual and his or her environment.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center for Recovery and

Recovery Oriented Psychiatric Rehabilitation for Persons with LongTerm Mental Illness

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

mfarkas@bu.edu; erogers@bu.edu

www.bu.edu/cpr/research/ongoing/rtc2009/index.html

Principal Investigator: Marianne Farkas, ScD; E. Sally Rogers, ScD 617/353-3549

Public Contact: E. Sally Rogers, ScD 617/353-3549; Fax: 617/353-7700

Project Number: H133B040026

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $750,000; FY 05 $750,000; FY 06 $750,000; FY 07 $750,000; FY 08

$750,000; FY 09 (No-cost extension through 6/30/2010)

Abstract: This project focuses on the concepts and dimensions of recovery and the various factors that

inhibit and facilitate recovery from long-term mental illness by a comprehensive and meritorious set of

research projects and training, technical assistance, and dissemination activities. The research and the

training, dissemination, and technical assistance programs are organized into the following three

programmatic areas of investigation and development: concepts and dimensions of recovery, factors

enhancing recovery, and factors inhibiting recovery. The research projects are designed to have an

impact on the field at multiple levels, including the personnel level as well as the program and system

levels. Research projects use a participatory research process with significant input from consumers

and other stakeholders, and culminate in dissemination, training, or technical assistance activities to

maximize the input of the research program. The Training, Dissemination, and Technical Assistance

(TDTA) projects are designed to provide exposure, experience, and expertise levels of knowledge

transfer. The TDTA program produces new technologies in recovery and psychiatric rehabilitation, and

increases the likelihood that researchers, service providers, and others use the cumulative knowledge

developed by the RRTC. The RRTC is tied together by its programmatic focus on the three specific

core areas, strengthened by the use of appropriate research strategies, and assisted by a vigorous

program of training, technical assistance, and dissemination activities designed to maximize the impact

of the RRTC at all levels in the field of psychiatric rehabilitation.
4-8 NIDRR Program Directory FY 2009 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Opening Doors for Children with Disabilities and

Special Health Care Needs

Children’s Hospital

Institute for Community Inclusion

300 Longwood Avenue

Boston, MA 02115-5737

www.openingdoorsforyouth.org/; developmentalscreening.org/

Principal Investigator: Judith S. Palfrey, MD

Public Contact: 617/355-4661; Fax: 617/730-0633

Project Number: H133B060012

Start Date: October 01, 2005

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $800,000; FY 07 $800,000; FY 08 $800,000; FY 09 $800,000

Abstract: This rehabilitation research and training center on children with disabilities who have

special health care needs (CYDS) tests the effectiveness of two intensive interventions, integrated

transition planning and community participation in recreation and fitness, and demonstrates the viability of a screening tool to promote access to services and supports for traditionally underserved communities. Research activities include two intervention projects that use randomized controlled designs to

improve the educational and recreational activities of CYDS and a demonstration project to improve

the early identification of CYDS from traditionally underserved communities. Research Study 1

investigates the use of a regional interagency team that integrates innovative practices in education,

social services, and medical support for transition aged students. Research Study 2 builds off of innovative practices in recreation and volunteer training to examine a model that integrates CYDS into

community recreation activities. Research Study 3 models the integration of a reliable screening

mechanism into the flow of activity at a busy, urban neighborhood health center. The RRTC is a

collaboration of the Massachusetts Consortium for Children with Special Health Care Needs, the

Parent Advocacy Coalition for Educational Rights (PACER), and six multicultural community-based

organizations that serve traditionally underrepresented communities. RRTC staff and collaborators

include nationally and internationally known experts in pediatrics, nursing, public policy, education,

family advocacy, rehabilitation, and community organizing.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-9

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Minnesota

Rehabilitation Research and Training Center for Community Living

and Employment for Individuals with Intellectual and

Developmental Disabilities

University of Minnesota

The Institute on Community Integration

204 Pattee Hall, 150 Pillsbury Drive, SE

Minneapolis, MN 55455

lakin001@umn.edu

rtc.umn.edu

Principal Investigator: Charlie Lakin, PhD 612/624-5005

Public Contact: Sheryl Larson, PhD 612/625-6024; Fax: 612/625-6619

Project Number: H133B080005

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 08 $850,000; FY 09 $850,000

Abstract: The Rehabilitation Research Training Center for Community Living (RRTC/CL) conducts

intervention and outcome research to generate and share knowledge about community living, employment, and self-determination. Through compressive study of individual outcomes of a random sample

of 10,300 adults with intellectual and developmental disabilities (I/DD) from 15 geographically representative states, this project studies intervention programs in self-determination, relationship building,

employment, and direct support professional training, and the first US and largest ever trial of the

active support model of organizational and staff support of persons with I/DD. Additionally, this study

identifies and evaluates existing instrumentation in community living outcome studies. The RRTC/CL

conducts quantitative intervention, outcome studies, and research synthesis on the state of knowledge

and practice and case studies of organizations exemplifying transformations and practice needs in order

to achieve full inclusion. Through training, conferences, and technical assistance this project provides

an integrated “intramural” training program that develops a “next generation” of skilled disability

researchers and professionals. This includes the RRTC/CL College of Direct Support, a national,

multimedia, interactive, Internet-based training program.
4-10 NIDRR Program Directory FY 2009 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center for Community

Integration for Individuals with Disabilities, Strengthening Family and

Youth Participation in Child and Adolescent Mental Health Services

Portland State University

Regional Research Institute

School of Social Work

P.O. Box 751

Portland, OR 97207-0751

janetw@pdx.edu

www.rtc.pdx.edu

Principal Investigator: Barbara Friesen, PhD 503/725-4166

Public Contact: Donna Fleming, Center Manager 503/725-8313; Fax: 503/725-4180

Project Number: H133B040038

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $835,000; FY 05 $835,000; FY 06 $801,190; FY 07 $785,400; FY 08

$750,400; FY 09 (No-cost extension through 9/30/2010)

Abstract: This project conducts research, training, and technical assistance activities to study and

promote effective, community-based, culturally competent, family-centered, individualized, and

strength-based services for children and youth with emotional or behavioral disorders and their families. Projects include: (1) “Community Integration (CI) of Transition-Age Youth,” is designed to gain

understanding of CI and related concepts from the perspectives of transition-age youth, young adults,

and caregivers; (2) “Transition to Independence: Outcomes of School-Based Support for Youth with

Mental Health and Developmental Disabilities” is evaluating a pilot school-based program that assists

participants age 18-21 with mental health and developmental disabilities to successfully transition to

employment and appropriate levels of independent living and use of adult social services; (3) “Achieve

My Plan (AMP)” [previously Partnerships in Individualized Planning] develops an intervention to

increase youth and family member participation in the individualized service planning process, a

conceptual framework for understanding recovery in children’s mental health, and ways to reduce

stigma; (4) “Work-Life Integration” addresses CI for adult caregivers of children and youth with

emotional disorders, specifically around maintaining employment. It is designed to influence human

resource professionals’ practice, and aims to reduce stigma and increase organizations’ family friendliness; (5) “Transforming Transitions to Kindergarten” focuses on the preschool-kindergarten transition

for young children with challenging behaviors. It develops and tests an intervention promoting

children’s successful school entry while empowering caregivers; (6) “Practice-Based Evidence: Building Effectiveness from the Ground Up,” conducts a case study in partnership with a Native American

youth organization and the National Indian Child Welfare Association, and addresses the need to study

practices that are believed to be helpful, but for which little evidence exists.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-11

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center for Pathways to Positive

Futures: Supporting Successful Transition for Youth and Young Adults

with Serious Mental Health Conditions

Portland State University

Regional Research Institute for Human Services

P.O. Box 751 (ORSP)

Portland, OR 97207-0751

flemingd@pdx.edu

Principal Investigator: Nancy M. Koroloff 503/725-9675

Public Contact: Donna Fleming, Center Manager 503/725-8313; Fax: 503/725-4180

Project Number: H133B090019

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 09 $800,400

Abstract: This project incorporates research, targeted training, and dissemination while adhering to a

single conceptual framework of synthesizing research guided by intervention approach. This framework focuses on building assets in four areas: (1) self-determination and positive identity, (2) youthand young adult-directed decision making, (3) skills for adult roles, and (4) supportive relationships

with peers and adults. The eight research projects (R1-R8) employ randomized controlled trial design,

focusing on testing the efficacy of an intervention and improving outcomes for transition-age youth

and young adults with serious mental health conditions. R1: My Career Vision tests an approach to

career planning and employment for young adults, ages 21-25, who are receiving SSI or extended

special education services. R2: Better Futures tests a comprehensive intervention to assist young

people in foster care with serious mental health conditions to prepare to participate in post-secondary

education. R3: Achieve My Plan studies the efficacy of an approach to helping young people lead their

mental health treatment planning teams, and to build service capacity to support youth engagement.

Two projects develop and test assessment inventories: R4: Transition Policy Consortium develops an

inventory that assesses the level of community support for transition services with a specific emphasis

on measuring collaboration and continuity of care between the child and adult mental health systems;

and R5: Finding Our Way furthers the development of a culturally specific self-assessment tool for

American Indian/Alaskan Native youth, ages 13-19, and the tool is modified to include issues relevant

to transition. Training, supervision, and coaching materials are produced to improve provider practice.

R6: eHealth examines the ways youth and young adults use the Internet to find information about

mental health care, conditions, symptoms, or medications. The R6 project identifies the kinds of

information that young people look for, tracks their search processes, and assesses how they verify the

accuracy of the information they find; then uses this information to develop and test an eHealth literacy

curriculum. R7: Recovery Outcomes analyzes data from the System of Care National Evaluation

related to young people’s recovery outcomes. R8: Mediators of Stigmatization analyzes data from

nationally representative samples of youth and young adults, and uses this information to identify

potentially effective anti-stigmatization strategies.
4-12 NIDRR Program Directory FY 2009 - Participation and Community Living

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Pennsylvania

Rehabilitation Research and Training Center on Participation and

Community Living of Individuals with Psychiatric Disabilities

University of Pennsylvania

Collaborative on Community Integration

3535 Market Street, 3rd Floor - CMHPSR

Philadelphia, PA 19104

pennrrtc@mail.med.upenn.edu

www.upennrrtc.org

Principal Investigator: Mark Salzer, PhD 215/349-8483

Public Contact: Katy Kaplan 215/746-6713; Fax: 215/349-8715

Project Number: H133B080029

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 08 $850,000; FY 09 $850,000

Abstract: The research of this center focuses on two core areas: (1) Enhancing the capacity of individuals and systems to maximize participation and community living through the advancement of

theory, measures, methods, and intervention knowledge, with a focus on Centers for Independent

Living, specific (education, parenting, mental health care) and broad participation domains, and efforts

to address disparities in understudied areas; and (2) increased incorporation of mental health research

findings into practice and policy through systematic reviews, partnering with multiple stakeholders to

advance the use of knowledge, and providing training, dissemination, and technical assistance to

change behaviors and practices of key stakeholders. The goal of this Center is to ensure, in the wake of

the Olmstead decision, that individuals with psychiatric disabilities not only move from institutional

care to more integrated settings but also are free to choose to participate in a wide range of roles in their

communities. This Center capitalizes upon longstanding collaborations among three Philadelphiabased central partners, experience derived from previous research, and trusting and mutual partnerships

with multiple stakeholders. These guarantee the project’s ability to conduct research that advances

knowledge that meets the needs of end-users and effectively translate this knowledge into innovative,

next generation policies and practices.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-13

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Texas

Developing Strategies to Foster Community Integration and

Participation (CIP) for Individuals with Traumatic Brain Injury

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

2323 South Shepherd, Suite 907

Houston, TX 77019

angelle.sander@memorialhermann.org

Principal Investigator: Angelle M. Sander, PhD

Public Contact: 713/630-0516

Project Number: H133B090023

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 09 $849,956

Abstract: This RRTC conducts three research projects and five training projects, providing a comprehensive approach to improving participation in all areas of community integration for all persons with

Traumatic Brain Injury (TBI), including minorities. Research Project 1 is a randomized controlled trial

of a community-based contextualized intervention to improve memory and memory-related participation activities. This trial compares the effectiveness of a contextualized memory intervention provided

in the participant’s home to standard instruction in use of a memory notebook for improving functional

memory and community participation. Research Project 2 is a randomized controlled trial of an extended case coordination service to maximize access to and benefit from state vocational rehabilitation

services. This trial compares employment outcomes for persons receiving a case coordination intervention to those only receiving a referral for state vocational rehabilitation services. Research Project 3

develops a comprehensive list of symptoms of TBI and, based on this list, creates a classification

system for persons with TBI utilizing symptoms, and barriers and facilitators for community integration. This system deploys an innovative, user-friendly, web-based application. Training and technical

assistance activities facilitate the widespread dissemination of educational materials on evidence-based

strategies for improving function and participation after TBI. Training projects focus on increasing

capacity for social networking and on providing education to persons with TBI, caregivers, and

treating clinicians, in order to maximize community participation. Training is also conducted in use of

the classification system to assist researchers and clinicians in allocating persons with TBI to appropriate treatments. Technical assistance activities are also conducted to improve implementation of training

activities and to maximize resulting community integration.
4-14 NIDRR Program Directory FY 2009 - Participation and Community Living

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

National Center for Parents with Disabilities and Their Families

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

tlg@lookingglass.org

www.lookingglass.org

Principal Investigator: Megan Kirshbaum, PhD; Paul Preston, PhD

Public Contact: 510/848-1112 (V); Fax: 510/848-4445

Project Number: H133A080034

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 08 $500,000; FY 09 $500,000

Abstract: The National Center for Parents with Disabilities and Their Families targets three national

populations: parents with diverse disabilities, family members, and service providers and trainees who

have a particularly critical impact on parents. The Center’s activities target the most critical issues

facing parents with disabilities and their families: custody and parental evaluations; family roles and

personal assistance; paratransit; and intervention with parents with cognitive and intellectual disabilities. The overall goal of this project is to improve the quality of life among parents with disabilities and

their families. This goal is met by incorporating the project’s research, development, training, and

technical assistance and dissemination activities into four project objectives. The four project objectives

are: (1) increase the national availability of accessible and disability appropriate resources for parents

with diverse disabilities and their families; (2) increase knowledge of parenting with a disability among

diverse parents, family members, and providers; (3) increase informed practice and informed decisions

regarding parenting with a disability among providers; and (4) increase state and local legislative and

policy changes to decrease discrimination against parents with disabilities and their children. The

Center conducts eight separate research and eight new development projects; provides technical

assistance to at least 8,000 parents and providers; conducts focused trainings to 12,000 diverse parents

and providers; and nationally disseminates at least 200,000 project materials and products consolidated

from Center activities as well as from other NIDRR-funded projects. Center activities are guided by

the following basic principles: (1) utility to parents, family members, and service providers; (2) social

change to improve the lives of parents with disabilities and their families; (3) consumer involvement as

integral to all activities; (4) value of consumer-based knowledge; (5) value of diverse perspectives; (6)

use of multiple and accessible formats; and (7) dissemination and utilization as interactive and ongoing

processes.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-15

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Louisiana

Evacuation Methodology and Understanding Behavior of Persons with

Disabilities in Disasters: A Blueprint for Emergency Planning Solutions

Louisiana State University

Stephenson Disaster Management Institute

1103 Patrick F. Taylor Hall

Baton Rouge, LA 70803

bgerber@lsu.edu

www.bus.lsu.edu/students/news/stories/2008.08.25_evac_method.asp? dept=69

Principal Investigator: Brian J. Gerber, PhD

Public Contact: 225/578-0238; Fax: 225/578-8741

Project Number: H133A080069

Start Date: October 01, 2008

Length: 24 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 08 $449,963; FY 09 $436,016

Abstract: This project quantifies and interprets the unique challenges of persons with disabilities and

other special needs during emergency/disaster evacuations in order to improve the management of such

events. Participating research institutions gathers data on persons with disabilities/special needs who

have either recently personally evacuated from an emergency/disaster situation, have been in or proximate to a recent disaster evacuation, or who reside in an area that has not experienced a recent evacuation, but might face a type of hazard that could prompt an evacuation some time in the future. The

project gathers data in order to evaluate the current state of evacuation preparedness in the area of

special/functional needs by local government and key non-governmental service providers across the

United States. The investigators integrate these two data sources to create guidelines that key decisionmakers, both governmental and nongovernmental, can use to improve existing evacuation plans to

account for the disabilities/special needs public based upon urban, suburban, and rural models. Likewise, the project also produces guidelines for incorporating a disability/special needs element in emergency evacuation training and exercises along with delineating future emergency preparedness educational needs within the individuals with disabilities community. Results and products of the study are

disseminated to service providers, emergency managers, first responders, other planners, and policy

makers across the United States.
4-16 NIDRR Program Directory FY 2009 - Participation and Community Living

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

A Center on Postsecondary Education for Students with Intellectual

Disabilities

University of Massachusetts Boston

Institute on Community Inclusion

100 Morrissey Boulevard

Boston, MA 02125

www.thinkcollege.net

Principal Investigator: Debra Hart, PhD; Meg Grigal, PhD 617/590-8082

Public Contact: Debra Hart, PhD 617/590-8082

Project Number: H133A080042

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 08 $500,000; FY 09 $500,000

Abstract: This center conducts research and disseminates information on promising practices that

support individuals with intellectual disabilities (ID) to access inclusive postsecondary education

resulting in improved long-term independent living and employment outcomes. Additionally, the

Center addresses the gaps in knowledge about the participation of individuals age 13-26 with intellectual disabilities in postsecondary education programs by: (1) conducting a national survey to collect

new national data from postsecondary programs that serve students with ID to identify key characteristics (e.g., recruitment, retention, college course access, use of accommodations) and promising practices of postsecondary education programs at community colleges, vocational-technical schools, and

four-year colleges that currently serve students with ID, including dual enrollment programs; (2)

conducting a secondary analysis using three existing national longitudinal datasets to determine

whether variations in educational, vocational, employment, and independent living outcomes for

students with ID are associated with participation in different types of postsecondary education programs; (3) compiling existing and developing new technical assistance materials, including replicable

promising practices for postsecondary education institutions that are developing new or expanding

existing services and programs for students with ID; and (4) disseminating both new and existing

technical assistance and informational materials in partnership with existing training and technical

assistance providers, including the NIDRR Research and Dissemination Centers, to all key stakeholders including students with ID and their families. The Institute for Community Inclusion works in

collaboration with TransCen, Inc.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-17

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Asset Accumulation and Economic Self-Sufficiency (AAESS)

Syracuse University

Office of Sponsored Programs

113 Browne Hall

Syracuse, NY 13244

Principal Investigator: Michael Morris

Public Contact: 202/296-2046; Address: 1667 K St., NW,; Suite 640,; Washington, DC 20006; Fax:

202/296-2046

Project Number: H133A080014

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 08 $300,000; FY 09 $300,000

Abstract: Building upon research conducted by the Asset Accumulation and Tax Policy Project

(AATPP), the current project provides understanding of economic status of working age adults with

disabilities, and policy and system barriers to asset accumulation and community participation. Two

intervention studies contribute individual and system level knowledge impacting asset accumulation,

economic self-sufficiency, and community participation of persons with disabilities. Intervention One:

Resource, Employment, Assets, and Learning (REAL) opportunity study, is an experimental design

building on research in the IRS Benchmark Study of Taxpayers with Disabilities (2006) and longitudinal outcome research findings in AATPP. REAL evaluates the impact of asset building strategies on

economic status and community participation of 360 individuals with disabilities during the project in 2

pilot sites. Intervention Two: Building Economic Success Together (BEST) Accounts study, offers a

comprehensive menu of accessible, user-friendly, affordable products and services in response to

evidence from AATPP. BEST is offered by credit unions in 6 culturally and geographically diverse

locations to 1,800 individuals with diverse disabilities and demographics such as age, gender, family,

minority status, and recent service disability. Data analysis is used to identify increased use of asset

building strategies, reduced dependence on payday and predatory lenders, reduction of debt, changes

in economic status, and savings. Thematic analysis of focus groups and interviews produce knowledge

on individual and system factors that diminish or facilitate opportunities to advance asset accumulation,

self-sufficiency, and community participation measures of social, civic, and economic activities.

AAESS continues collaboration with the IRS to design and conduct an updated and extended benchmark study in 2009 to further research on economic status of taxpayers differentiated by disability and

demographics to help design future research. The project includes creation and dissemination of asset

development and financial literacy curricula to complement other poverty-alleviation strategies.
4-18 NIDRR Program Directory FY 2009 - Participation and Community Living

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Oregon

School Transition & re-Entry Program (STEP): Systematic Hospital-toSchool Transition for Students with Traumatic Brain Injury

Western Oregon University

The Teaching Research Institute

99 West 10th Avenue, Suite 370

Eugene, OR 97401

glanga@wou.edu

www.tr.wou.edu/STEP/

Principal Investigator: Ann E. Glang, PhD

Public Contact: 541/346-0594; Fax: 541/346-0599

Project Number: H133A060075

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 06 $300,000; FY 07 $300,000; FY 08 $300,000; FY 09 $300,000

Abstract: Due to the absence of effective procedures for transitioning students from hospital to school,

many students with traumatic brain injury (TBI) who need specialized services are not identified for

special education. This lack of identification can lead to inappropriate services, and perpetuates the

lack of awareness of TBI among school professionals. This project utilizes a systematic approach to

developing, testing, and disseminating a comprehensive hospital-school transition intervention, called

the School Transition & re-Entry Program (STEP). Researchers evaluate the effectiveness of the STEP

intervention, which includes referral to a school-based transition specialist, long-term tracking of

student performance, and parent advocacy training, in a three-phase research plan. Following the

Phase I development period involving focus groups and interviews with parents, hospital staff, and

school personnel, and a year-long pilot test (Phase II), the project evaluates the effectiveness of the

transition intervention in a multi-site randomized control trial (Phase III).
NIDRR Program Directory FY 2009 - Participation and Community Living 4-19

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Oregon

Identification and Reporting of Violence by People with Disabilities

Oregon Health and Science University

School of Nursing

3181 SW Sam Jackson Park Road

Portland, OR 97201

powersl@pdx.edu; oschwald@pdx.edu

selfdeterminationohsu.org

Principal Investigator: Mary Ann Curry 503/494-8655

Public Contact: Mary Oschwald, PhD 503/725-9602; Fax: 503/725-4180

Project Number: H133A031724

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $300,000; FY 04 $300,000; FY 05 $300,000; FY 06 $300,000; FY 07

$300,000; FY 08 (No-cost extension though 11/30/2009)

Abstract: The purpose of this project is to reduce the prevalence of violence against people with

disabilities. People with disabilities are at substantially higher risk for violence, abuse, and criminal

victimization than the general population. The identification and reporting of violence typically involves individuals’ self-identifying as victims and accessing safety and reporting information and

resources, as well as the availability of sensitive and accessible reporting methods. The goal of this

project is to improve the identification, reporting, and response to violence against persons with disabilities living in the community by: (1) validating the efficacy of a culturally sensitive approach to

promote violence screening, safety behaviors, disclosure, and reporting by women with disabilities; (2)

increasing knowledge of the extent to which current crime reporting methods incorporate disability

status and accommodation information, and the barriers faced by police jurisdictions across the nation

in documenting and facilitating crime reporting by persons with disabilities; and (3) identifying practices and policies that promote and support violence disclosure and reporting by individuals with

disabilities.
4-20 NIDRR Program Directory FY 2009 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

Assessing Safety Risk after Traumatic Brain Injury

Shepherd Center, Inc.

2020 Peachtree Road, NW

Atlanta, GA 30309

ron_seel@shepherd.org

Principal Investigator: Ronald T. Seel, PhD

Public Contact: 404/387-5625; Fax: 404/350-7596

Project Number: H133G080153

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $199,896; FY 09 $199,613

Abstract: This project develops a standardized, ecologically valid measure of safety risk in persons

aged 16 and older who have sustained mild complicated, moderate, or severe traumatic brain injury

(TBI). An ecologically sensitive item bank is developed to assess the wide range of potential safety

issues that persons with TBI face in everyday living situations. Focus groups are conducted with

primary stakeholders including persons with TBI, family caregivers, and service providers to establish

content validity. Item Response Theory (IRT) methodologies, specifically Rasch analysis, are used to

calibrate items along a hierarchy matching item difficulty to the safety abilities of persons with TBI.

Based on Rasch analyses, the safety measure for persons with TBI generates safety risk probability

scores on four scales theorized to be causative factors: physical capacity, cognitive capacity, perceived

susceptibility to harm (judgment), and self-regulation (impulsivity). Ecological and prognostic validity

is established using family journals in which unsafe behavior of persons with TBI is recorded and

rated.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-21

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Homeless Mentally Ill: Strategies for Maintaining Residential Stability

College of Health & Rehabilitation Sciences: Sargent College

Deparment of Occupational Therapy

635 Commonwealth Avenue

Boston, MA 02215

helfrich@bu.edu

people.bu.edu/helfrich/homelessness.pdf

Principal Investigator: Christine A. Helfrich, PhD

Public Contact: 617/353-8947; Fax: 617/353-2926

Project Number: H133G060180

Start Date: December 01, 2006

Length: 12 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 06 $149,998; FY 07 (No-cost extension through 11/30/2008); FY 08 (No-cost

extension through 11/30/2009)

Abstract: This project implements, evaluates, and disseminates a life skills intervention designed to

increase skills necessary for maintaining housing for 230 homeless adults with psychiatric disabilities

to prevent their return to the streets, reinstitutionalization, hospitalization, or jail. These skills include

room and self-care management, food management, financial management, and safe community

participation. This three-year project is conducted in two housing programs: supervised emergency

housing and single room occupancy housing with case management. The intervention was developed

based on Empowerment Theory, the Transtheoretical Model of Change, Social Learning Theory using

a skills training approach, and the Model of Human Occupation. The objective of this intervention is to

increase the time an individual remains housed and decrease the evictions that occur secondary to his/

her inability to perform the skills and behaviors necessary to maintain housing.
4-22 NIDRR Program Directory FY 2009 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Kansas

Combining Technologies to Maximize Outcomes: Telemedicine and

Online Training Program for Parents of Children with Autism

University of Kansas

Schiefelbusch Institute for Life Span Studies

Juniper Gardens Children’s Project

650 Minnesota Avenue, 2nd Floor

Kansas City, KS 66101

lhpowell@ku.edu

www.jgcp.ku.edu

Principal Investigator: Linda S. Heitzman-Powell, PhD

Public Contact: 913/321-3143; Fax: 913/371-8522

Project Number: H133G060238

Start Date: October 01, 2006

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 06 $149,824; FY 07 $149,965; FY 08 $149,923; FY 09 (No-cost extension

through 9/30/2010)

Abstract: This project seeks to address challenges faced by geographically remote families in accessing effective intervention services for their young children diagnosed with an autism spectrum disorder

(ASD). In order to address this challenge, the project is developing a program that uses a research-topractice outreach training model to teach parents of children with an ASD how to implement empirically-based interventions with their children. The development of this program is proceeding across

four phases: (1) initial content and system development and informational focus groups; (2) formative

evaluation; (3) quasi-experimental assessment and system refinement; and (4) final analysis and preparation for dissemination. In Phase 3, parents of children with autism are using online tutorials to learn

general information and concepts related to an intervention or treatment protocol, followed by a

telemedicine clinic intervention session. During the intervention session parents practice the techniques

discussed in that week’s online tutorials with their child while receiving guidance and immediate

feedback from trained intervention coaches. Program effectiveness is being evaluated based on level of

parental knowledge and skill fluency, child level of disability (e.g. the ICF) and behavior, and reported

family quality of life. In addition, participants complete exit surveys and interviews to elicit feedback

regarding how the program could be improved and any problems they experienced. Intervention

components are introduced to study families in a multiple baseline design. In order to assess the

sustainability of the project, following Phase 3, six additional families are recruited to participate in the

outreach telemedicine clinic from a community-based telemedicine site (Phase 4).
NIDRR Program Directory FY 2009 - Participation and Community Living 4-23

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Kansas

Accommodations and ADA for Post-Secondary Students with

Disabilities

University of Kansas

1000 Sunnyside Avenue

Life Span Institute, Room 4060

Lawrence, KS 66045-7555

glen@ku.edu

Principal Investigator: Glen W. White, PhD

Public Contact: 785/864-4095; Fax: 785/864-5063

Project Number: H133G090222

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 09 $199,997

Abstract: This project develops an accommodations training technology (ATT) designed to maximize

the skills of students with disabilities to advocate for accommodations needed to succeed in

postsecondary educational settings. The ATT uses evidence-based research from a recently completed

single-subject research study that empirically demonstrated post-secondary students’ improvement of

their self-advocacy skills and knowledge about their legal rights and responsibilities under the ADA,

by participating in a researcher-designed training package. The new program further enhances the

previous work by using a state-of-the art interactive computer program that is scaleable and meets the

preferences of the target population, coupled with a skills based training component that is both flexible and portable (e.g., hand-held electronic devices via interactive text with graphics, Adobe Flash,

Apple Quicktime, enhanced iPod and MP3 media formats). The project goal is to provide

postsecondary students with disabilities the knowledge and skills to acquire needed ADA accommodations in postsecondary educational settings. The objectives are: (1) utilize the Consumer Empowered

Team participant advisers to review and update current content curriculum and design a facilitator

manual; (2) design online components to deliver the ATT model; (3) replicate face-to-face application

of the ATT model in Round 1 with six students with disabilities at one university setting. (4) replicate

the revised (from Round 1) ATT model in Round 2 with 24 students with disabilities at 2 universities,

using online applications and facilitator manual; (5) conduct a pilot test of the finalized (from Rounds 1

and 2) ATT model with 60 students with disabilities at 2 universities; and (6) develop and implement a

marketing plan to distribute and publicize the product that results from this development project.
4-24 NIDRR Program Directory FY 2009 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Instrument to Measure Recovery-Promoting Competence Among

Providers Serving Spanish Speaking Mental Health Consumers

Boston University

Sargent College of Health and Rehabilitation Sciences

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

erogers@bu.edu

Principal Investigator: E. Sally Rogers, ScD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133G060071

Start Date: November 01, 2006

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 06 $149,735; FY 07 $149,908; FY 08 $149,953; FY 09 (No-cost extension

through 10/30/2010)

Abstract: The purpose of this project is to culturally adapt the Recovery Promoting Relationships

Scale (RPRS) for use in four Spanish-speaking cultures (that is, individuals of Mexican, Puerto Rican,

Cuban, and Central and Latin American descent). The resulting scale is an intervention blueprint

designed to cut across specific disciplines and services, to specify the skills and strategies needed to

promote recovery, and to improve the expertise of providers serving Spanish-speaking consumers. This

process helps address the critical need for recovery-oriented mental health services that are research

based, culturally informed, and grounded in the perspectives of Latinos with psychiatric disabilities.

Thus, the goals of this project are: (1) to identify and refine the recovery-oriented competencies required of providers serving mental health consumers of four Spanish speaking cultures; (2) to adapt the

RPRS to be culturally relevant to mental health consumers of four Spanish-speaking cultures; (3) to

pilot test the psychometric properties of the RPRS; (4) to test the clinical utility of the RPRS; and (5) to

systematically develop implications for practice, training of practitioners, and policy, and broadly

disseminate the results.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-25

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Development of Measures of Participation and Environment for

Children with Disabilities

Boston University

Sargent College of Health and Rehabilitation Sciences

635 Commonwealth Avenue

Boston, MA 02215

wjcoster@bu.edu

www.bu.edu/kidsworld

Principal Investigator: Wendy J. Coster, PhD 617/353-7518

Public Contact: 617/353-7518; Fax: 617/353-2926

Project Number: H133G070140

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 07 $195,233; FY 08 $195,360; FY 09 $197,023

Abstract: This project develops new measures of participation and environment for children and

youth with disabilities using input from families and their children with disabilities. The new measures

are developed using Item Response Theory (IRT) to ensure that the measures developed are interpretable, provide interval level data for analyses, and are valid for the specified purposes. The project has

three major phases. The first phase is a development phase that synthesizes results from prior research

on participation and environment and analysis of the ICF with information derived from focus groups

of caregivers and children and youth with a variety of disabilities to identify meaningful domains and

item content areas for the new measures. Initial item pools are developed, subjected to expert review

and cognitive testing, and then field-tested with both caregiver and child respondents to identify any

significant problems with scaling or content coverage using IRT methods. After revisions based on

these results, a larger field study is conducted using both paper and web-based survey formats to

examine the properties of the revised item pools. The ultimate aim is to develop large pools of participation and environment items that can support survey and computer-adaptive testing measures that are

linked on a common scale. This approach allows flexible development of alternative forms whose

derived scores can be compared directly with one another, e.g. so that results from different studies are

more easily compared. The present project develops and tests (using simulation studies) short survey

forms from the initial pools for immediate use. The research is a collaborative effort between experienced investigators in the United States and Canada. This collaboration facilitates development of

broadly applicable measures by taking into account potential differences in environment and participation across very different health care delivery systems.
4-26 NIDRR Program Directory FY 2009 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Life Skills: Transitioning from Homelessness and Isolation to Housing

Stability and Community Integration

Boston University

Sargent College of Health and Rehabilitation Sciences

Department of Occupational Therapy

635 Commonwealth Avenue

Boston, MA 02215

helfrich@bu.edu

people.bu.edu/helfrich/

Principal Investigator: Christine A. Helfrich, PhD

Public Contact: 617/353-8947; Fax: 617/353-2926

Project Number: H133G090046

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 09 $199,998

Abstract: This randomized control trial implements, evaluates, and disseminates a life skills intervention to increase skills necessary for achieving housing stability and community participation and living

for 150 homeless adults with disabilities. These skills include home and self-care management, food

management, financial management, and safe community participation. The objectives of this study are

to: (1) evaluate the ability of the intervention to improve housing stability and increase participants’

level of community integration, including the steps they take toward employment and self-sufficiency;

(2) identify the feasibility issues inherent in delivering interventions to this highly vulnerable population; and (3) train agency staff and peer mentors to enable project sustainability. This three-year project

is a partnership between Boston University, HomeStart, the Pine Street Inn, and the National Center

for Family Homelessness (NCFH). These Boston-area partner agencies offer Housing Search, Housing Stabilization, and Housing First programs, which provide a diverse set of conditions for implementation evaluation. The project uses a manualized intervention that was developed for a previous project

with homeless adults with mental illness and is based on Empowerment Theory, Social Learning

Theory, and the Model of Human Occupation.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-27

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

The Effects of a Bicycle Training Intervention on Health, Physical

Activity, Sleep, and Community Participation in Youth with Down

Syndrome and Autism Spectrum Disorders

University of Michigan

Center for Motor Behavior and Pediatric Disabilities

1402 Washington Heights, 3126 OBL

Ann Arbor, MI 48109-2013

ulrichd@umich.edu

www.kines.umich.edu/research/cmbpd.html

Principal Investigator: Dale Ulrich, PhD; Joseph Hornyak, MD

Public Contact: 734/615-1904; Fax: 734/647-2808

Project Number: H133G090006

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 09 $195,188

Abstract: This 3 year study involves a randomized trial design to determine the effects of an individualized bicycle training intervention on functional performance, time spent in moderate to vigorous

physical activity, patterns of sleep, and community participation and integration of 160 youth with

Down Syndrome (DS) and autism spectrum disorder, aged 9-18 years. Participants who are randomly

assigned to the Experimental group (EXP) receive the bicycle training during the first year while the

Control group (CON) does not receive the bicycle training until the second year but receives alternative educational or community-based lessons while they wait. After receiving their bicycle training

intervention, participants in the EXP and CON groups are monitored for 24 months to help determine

the frequency of bicycle riding, environmental factors that influence the frequency of bike riding, the

frequency of falls, their pattern of night time sleep, the amount of time they spend in sedentary, light,

moderate, and vigorous physical activity, self and parent perceptions of their riding skill, with whom

they ride, where in the community they ride their bicycle, and in what other activities they participate,

in their community. At entry into the study, none of the participants will be able to ride a two-wheel

bicycle.
4-28 NIDRR Program Directory FY 2009 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Work Environment and Quality of Life Outcomes: A Comparison of the

Experiences of Formal and Informal Caregivers of Persons with Spinal

Cord Injuries

Wayne State University

Rehabilitation Institute of Michigan

Research Department

261 Mack Boulevard, Room 520

Detroit, MI 48201

cduggan@dmc.org

Principal Investigator: Colette Duggan, PhD; Daniela Ristova-Trendov, MD; 313/745-1070

Public Contact: 313/745-9735; Fax: 313/745-1197

Project Number: H133G060267

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 06 $149,989; FY 07 $149,950; FY 08 $149,994

Abstract: For many persons with a spinal cord injury (SCI), assistance with activities of daily living

and instrumental activities of daily living is crucial to their long-term survival, independence, and

productivity. The goal of this qualitative investigation is to gain a better understanding of the work

environments of SCI caregivers and the micro-processes at work that produce impacts on caregivers’

appraisals of burden, stress, physical health, and psychosocial well-being. The objective of the study is

to document from a contextual life perspective, the linkages between the specific demands of

caregiving and its health consequences. The study targets three groups of SCI caregivers: unpaid

(family) caregivers, paid caregivers hired directly by the consumer, and paid employees of home health

care agencies. The specific aims of the study are to: (1) conduct a comparative study of these three

caregiver groups; (2) analyze this information with specific attention to the connections between

aspects of the work environment, stress, physical health, and psychosocial well-being, and (3) disseminate this information to SCI consumers and their families, rehabilitation researchers, and clinicians, and

to agencies charged with the responsibility of establishing health care policies.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-29

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Montana

CIL-Based Abuse Education and Safety Planning Program for Women

with Disabilities

University of Montana

The University of Montana Rural Institute:

A Center for Excellence in Disability Research, Education and Services

52 Corbin Hall

Missoula, MT 59812-7056

rhughes@ruralinstitute.umt.edu

Principal Investigator: Rosemary Hughes, PhD

Public Contact: 406/243-2898; Fax: 406/243-4730

Project Number: H133G070196

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 07 $199,996; FY 08 $199,985; FY 09 $199,987

Abstract: The purpose of this project is to develop and evaluate an accessible, consumer-driven abuse

education and safety planning program for women with disabilities. The conceptual model for the

program identifies knowledge about safety planning, self-efficacy, and social connectedness as three

protective factors that influence safety behaviors and safety itself. Drawing on both the strengths of

traditional, community-based domestic violence and sexual assault programs and the cumulative

research findings on the dynamics and prevalence of violence against women with disabilities, this

program offers an integrated approach for meeting the gender-specific and disability-sensitive prevention needs of women with disabilities. The intervention is implemented with women with disabilities

recruited from the ten centers of independent living (CILs) and randomly assigned to a group that will

participate in either the on-going CIL services plus the abuse education and safety planning program,

or to a group receiving the on-going CIL services only. The program consists of six 2.5-hour weekly

sessions using a curriculum that includes topics such as self-advocacy, nature of abuse and violence,

safety planning strategies, and healthy relationships. All sessions include self-efficacy training, goalsetting, problem-solving, and interactive activities to encourage mutual support. A CIL staff member

from each site participates in a comprehensive leader training program conducted by the project personnel. This is the first randomized, controlled evaluation of a violence prevention group program

designed to meet the unique needs of women with disabilities.
4-30 NIDRR Program Directory FY 2009 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Controlled Study of Affect Recognition Training for Individuals with

Traumatic Brain Injury

University at Buffalo

The State University of New York

Department of Psychiatry

G96 Farber Hall; 3435 Main Street

Buffalo, NY 14214

Principal Investigator: Barry S. Willer, PhD; Machiko Tomita, PhD

Public Contact: Barry S. Willer, PhD 716/829-2300; Fax: 716/829-2300

Project Number: H133G080043

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $200,000; FY 09 $200,000

Abstract: The goal of this project is to compare the effects of two innovative training programs on

improving various aspects of emotion recognition in persons with traumatic brain injury (TBI), through

a randomized controlled trial. It has been demonstrated that individuals with TBI often have difficulty

using facial expressions and social contexts to determine how someone is feeling. It is apparent that an

impairment of this nature could considerably influence the behavioral and social outcomes for individuals with TBI. In this study, participants are randomly assigned to one of three groups: Facial Affect

Recognition training, Stories of Emotional Inference training, or (no treatment) Computer Training

Group. Training occurs three times a week for three weeks. Specific outcome measures include: (1)

facial affect recognition (static photos); (2) affect recognition and social inference from video vignettes;

(3) emotional inference for hypothetical situations; (4) level of empathy; and (5) social behavior.

Cognitive performance and level of depression are covariates. In addition, vocal affect recognition

(audiotape) and community integration are also explored.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-31

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Direct vs. Interpreted Administration of the SPAT

University of Rochester School of Medicine

Deaf Wellness Center

300 Crittenden Boulevard

Rochester, NY 14642

robert_pollard@urmc.rochester.edu

www.urmc.rochester.edu/dwc/index.htm

Principal Investigator: Robert Pollard, PhD

Public Contact: 585/275-3544; Fax: 585/273-1117

Project Number: H133G090189

Start Date: October 01, 2009

Length: 24 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 09 $101,484

Abstract: The goal of this two-year study is to determine whether direct administration of the Signed

Paired Associates Test (SPAT) by sign-fluent examiners yields test results that are equivalent to administration by examiners who communicate through a qualified sign language interpreter. A second

objective is to investigate the influence of age on SPAT performance, which has not yet been done and

would aid the design of later studies seeking to establish-reliable age norms. The study design allows

researchers to control for age-related variation in SPAT performance and determine whether the results

of SPAT direct administration versus SPAT interpreter-mediated administration vary as a function of

age. Finally, the project statistically estimates the relative effects of interpreter use per se versus the use

of particular interpreters on SPAT performance. SPAT, developed through NIDRR funding, is the first

psychological test of verbal (i.e., language-based) learning and memory designed for use with deaf

individuals who communicate in sign language.
4-32 NIDRR Program Directory FY 2009 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

North Carolina

Improving Representative Payeeship for People with Psychiatric

Disabilities and their Families

University of North Carolina at Chapel Hill

School of Medicine

Department of Psychiatry

Forensic Psychiatry Program

Campus Box 7160

Chapel Hill, NC 27599

eric.elbogen@unc.edu

Principal Investigator: Eric Elbogen, PhD

Public Contact: 919/966-5540

Project Number: H133G070072

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 07 $198,669; FY 08 $199,187; FY 09 $169,372

Abstract: This project evaluates a pilot-tested, stakeholder-informed intervention that is grounded in

principles of psychiatric rehabilitation and encourages consumers with psychiatric disabilities and their

family members to collaborate within the representative payee arrangement. Representative payees,

mostly family members, manage Social Security Administration funds for more than one million

people with psychiatric disabilities. Although studies show payeeship can be used coercively, foster

dependency, reduce work incentives, and lead to family conflict and even violence, there has been little

systematic research on how to lower these significant barriers to community integration. This project

tests the Collaborative Representative Payeeship intervention, a brief, four-session intervention that

aims to facilitate a cooperative consumer-payee relationship, increase accurate knowledge about

representative payeeship, promote collaborative money management and effective budgeting, and

prepare mutually developed plans for carrying out the payeeship in the future. The long-term goal is to

promote recovery among adults with psychiatric disabilities who have payees by reducing downsides

associated with what has been called “the nation’s largest guardianship system.”
NIDRR Program Directory FY 2009 - Participation and Community Living 4-33

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

North Carolina

Daily Living and Community Skills Video Game for Children with

Developmental Disabilities

The Sandbox Learning Company

18801 Nautical Drive, Suite 206

Cornelius, NC 28031

Principal Investigator: Amy Maguire

Public Contact: 800/704-7815; Fax: 877/562-2923

Project Number: H133G080151

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 08 $199,175; FY 09 $199,765

Abstract: This project develops and evaluates a simulation video game to teach children with developmental disabilities, including autism and intellectual disabilities, skills for independence. The project

teaches chained tasks in an engaging and effective game format. This system provides an innovative

and inexpensive way to increase opportunities for instruction while providing correction procedures,

giving multiple exemplars, monitoring progress, and including clips from each student’s community.

This project expands on the preliminary findings in a Phase I study to develop an easy to use, economical, daily living skills game which brings real world experiences and treatment into the classroom

and home. Project goals include: (1) to expand on the successful techniques demonstrated in preliminary studies to create a fully-functional game with 24 skills, and (2) to verify through a single subject

design, specifically multiple probes across behaviors, that the simulation video game alone teaches the

skills to 24 children in elementary and middle school with developmental disabilities. A team of educational experts, technology experts, and parents of children with disabilities collaborate on the project to

ensure the skills presented in the game are truly beneficial to individuals with developmental disabilities and the technology used will have the greatest reach. 
4-34 NIDRR Program Directory FY 2009 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Ohio

Teen Online Problem Solving for Pediatric Brain Injury

Children’s Hospital Medical Center

Pediatric Rehabilitation

3333 Burnet Avenue

MLC 4009

Cincinnati, OH 45229-3039

shari.wade@cchmc.org

Principal Investigator: Shari L. Wade, PhD 513/636-7480

Public Contact: Fax: 513/636-7360

Project Number: H133G050239

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 05 $149,629; FY 06 $148,735; FY 07 $149,569; FY 08 (No-cost extension

through 9/30/2009); FY 09 (No-cost extension through 9/30/2010)

Abstract: Traumatic brain injury (TBI) in adolescents is a significant stressor for both the teen and his

or her family. Existing interventions are rare and distance and finances can restrict access to treatment.

The current project addresses these needs by developing and piloting an innovative online intervention

for adolescents with TBI: Teen Online Problem Solving (TOPS). The TOPS intervention is adapted,

based on input from teens with TBI, from a recently developed online program for school-aged children with TBI and their families. The project tests the TOPS intervention in a randomized trial comparing the effects of usual care to TOPS on the following outcomes: (1) adolescent problem-solving and

communication skills; (2) adolescent emotional/behavioral adjustment; (3) parent burden and distress;

and (4) parent-teen conflict. TOPS makes use of emerging technology to address the multifaceted

needs of teens following TBI with the goal of improving the teen’s social and emotional functioning,

thereby enabling him or her to better negotiate the complex transition to adulthood and independent

functioning.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-35

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Ohio

Web Therapy to Improve Outcomes After Traumatic Brain Injury in

Young Children

Children’s Hospital Medical Center

Pediatric Rehabilitation

3333 Burnet Avenue

MLC 4009

Cincinnati, OH 45229-3039

shari.wade@cchmc.org

Principal Investigator: Shari L. Wade, PhD

Public Contact: 513/636-7480; Fax: 513/636-7360

Project Number: H133G060167

Start Date: December 01, 2006

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 06 $149,379; FY 07 $147,834; FY 08 $146,762

Abstract: This project adapts online family problem solving for families of young children with

traumatic brain injury (TBI) (I-InTERACT: Internet-based Interacting Together Everyday - Recovery

After Childhood TBI) and compares it to an Internet resource comparison group (IRC) in a randomized clinical trial. Participants include families of 40 children, aged 3-8 years, who experienced a

moderate to severe TBI 1-24 months prior to study participation. In I-InTERACT, a trained counselor

guides families through a six-month structured online parenting skills-building program via a website

and one-on-one videoconference sessions. The IRC group receives computers, high-speed Internet

access, and links to brain injury information and resources, but not the I-InTERACT website content

or synchronous sessions. Primary outcomes, to be assessed pre- and post-treatment, include parenting

behaviors (e.g., warmth, responsiveness, and criticism) and parent-child communication. Secondary

outcomes include child behavior problems and parent psychological distress. The overarching goal of

this project is to reduce the risk of long-term behavioral problems and disability in young children

following TBI by equipping parents with increased coping and parenting skills in a cost effective

fashion.
4-36 NIDRR Program Directory FY 2009 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Ohio

Developing College Campuses as Transition Settings for Students with

Severe and Multiple Disabilities Aged 18-21

Kent State University

College and Graduate School of Education, Health & Human Services

Educational Foundations and Special Programs

405 White Hall

Kent, OH 44242

Principal Investigator: Robert Flexer, PhD

Public Contact: 330/672-0584; Fax: 330/672-2512

Project Number: H133G080158

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 08 $199,973; FY 09 $199,871

Abstract: This project is designed to address need for sustainable, community-based programs for

students with severe and multiple disabilities (SMD) aged 18-21 by using the college campus as a

transition setting. It also addresses the need for SMD transition professionals to obtain skills in the

areas of person-centered planning, community partnering, and interagency collaboration. Students with

SMD are enrolled in a college-level continuing education class on life planning provided by Kent

State’s Career Services Center. A university instructor directs this class, and collaborating SMD professionals and Kent State students receive service learning credits for providing person-centered planning

and individualized campus activities for the participating students with SMD. These planning and

campus activities are coordinated with students’ individual education and employment plans (IEPs and

IPEs, respectively). Students with SMD are also enrolled in at least one college-level class each semester to assure that they have access to all of Kent State’s services including career planning, health and

wellness, student employment, extracurricular activities, and life-long learning opportunities. To

achieve these outcomes, project staff pursue five objectives: (1) develop college classes for 30 students

with SMD that engage practicing and prospective transition professionals in their life and career

planning; (2) develop and implement daily campus activities for 30 students with SMD based on their

life plans; (3) engage students with SMD, their teachers, university faculty, and other transition stakeholders in evaluating, refining, and supporting this model; (4) develop materials for replication of this

model; and (5) disseminate and replicate this project at other universities.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-37

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Development of a Safety-Planning Tool for Men with Disabilities

Portland State University

Regional Research Institute

P.O. Box 751

Portland, OR 97201

oschwald@pdx.edu

Principal Investigator: Mary Oschwald, PhD

Public Contact: 503/725-9602

Project Number: H133G070190

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 07 $200,000; FY 08 $200,000; FY 09 $199,999

Abstract: In order to plan for safety, men with disabilities (MWD) need to be aware of options and

have access to responsive community resources that support healing, support independence, and assist

with the reporting of violence. The purpose of this project is to develop a gender-appropriate Audio

Computer-Assisted Self-Interview (A-CASI) to ensure MWD have the skills necessary for effective

safety planning. The major goals of the project are to: (1) work closely with MWD to identify safetyplanning options for dealing with abuse; and (2) develop and pilot an A-CASI Safety-Planning Tool

that builds upon current research findings on the abuse experiences of men with disabilities and previous development of a similar A-CASI program for women with disabilities. The project is conducted

by the Regional Research Institute at Portland State University in collaboration with The Rural Institute at University of Montana.
4-38 NIDRR Program Directory FY 2009 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Parent-Infant Interaction Project (PIIP)

Portland State University

Graduate School of Education; SPED

P.O. Box 751

Portland, OR 97207

munsonl@pdx.edu

Principal Investigator: Leslie J. Munson, PhD; Ruth Falco, PhD; David Allen, PhD

Public Contact: Leslie J. Munson, PhD 503/725-4687; Fax: 503/725-5599

Project Number: H133G080132

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 08 $199,945; FY 09 $199,950

Abstract: The Parent-Infant Interaction Project (PIIP) develops an evidence-based curriculum for

implementation by parents with intellectual disabilities and their professional or paraprofessional

coaches within natural environments to enhance parent-infant interaction and child development. Goals

of PIIP include: (1) develop a research-based curriculum, coaching model, and training materials for

use by parents with intellectual disabilities and their coaches in a collaborative process to enhance the

parent-infant relationship and nurture child development; (2) conduct single subject studies of the

effects of PIIP coaching model, curriculum, and training materials, including multiple-baseline design

studies across goals and the collection of additional qualitative data; and (3) field-test and evaluate the

coaching model, curriculum, and training materials through a multi-method study across three different

types of early childhood/parent support programs. Partners in PIIP include Early Head Start and Early

Intervention/Early Childhood Special Education, as well as a program providing supports for parents

with intellectual disabilities. The PIIP Coaching Model incorporates innovative strategies and applies

technology that is accessible to individuals with intellectual disabilities. Innovative strategies include a

model for coaching that focuses on self-determination and empowerment of parents as advocates and

decision-makers for themselves and their child. The Infant-Caregiver Interaction Scale provides a tool

to guide collaborative observation, goal-setting, and continuous feedback for parents and their coaches.

The project develops accessible technology, including a DVD of examples of interaction activities with

video-modeling, for use in coaching parents as they learn strategies to enhance parent-infant interaction

within daily play activities. Strategies for planning individualized accommodations, such as easyreading/picture activity schedules and menus, audio prompts, social stories, and self-management

systems, to address parent-child needs are included in the curriculum.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-39

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

Investigating Environmental Factors Affecting Community Integration

University of South Carolina

Department of Psychology

1512 Pendleton Street

Columbia, SC 29208

kloos@sc.edu

Principal Investigator: Bret Kloos, PhD

Public Contact: 803/777-2704; Fax: 803/777-9558

Project Number: H133G090036

Start Date: August 16, 2009

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 09 $199,962

Abstract: This project examines environmental factors that can promote or impede participation in

community life for persons with psychiatric disabilities who live independently. While recent research

has documented how individual factors can affect integration (e.g., participation in activities, feelings

of belonging), relatively little is known about the community-based factors that can affect community

integration for persons with mental illness. The study has three specific aims: (1) document the range

of housing and neighborhood environment conditions for persons with psychiatric disabilities who live

in their own dwelling without resources from supported housing; (2) develop and test a framework of

environmental factors that can promote or impede community integration across four domains: physical, social, psychological, and opportunities for integration; and (3) advance methodology for community integration research by (a) testing competing measures of physical, social, psychological integration, and integration opportunities, and (b) using Geographic Information Systems to facilitate analyses

of environmental factors. This project addresses the gap in knowledge about environmental factors and

integration by investigating how (a) housing conditions, (b) neighborhood conditions, (c) interpersonal

relationships tied to housing, and (d) census indicators of community composition may affect community integration efforts of persons with psychiatric disabilities.
4-40 NIDRR Program Directory FY 2009 - Participation and Community Living

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Outpatient Social Skills Training for Distressed Adolescent Burn

Survivors

University of Texas Medical Branch

815 Market Street

Galveston, TX 77550

pblakene@utmb.edu

Principal Investigator: Jennifer L. Perry 409/770-6718

Public Contact: 409/770-6718; Fax: 409/770-6718

Project Number: H133G050079

Start Date: October 01, 2005

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 05 $150,000; FY 06 $150,000; FY 07 $150,000; FY 08 (No-cost extension

through 12/31/2009)

Abstract: Previous studies suggest that a significant number of survivors of pediatric burn injuries

have a diminished quality of life as young adults. Based on social learning theory and supported by

empirical data, social skills deficits have been identified as a major impediment to maximum psychosocial adjustment for many who have survived serious burn injury; this deficit is a particular handicap as

the child progresses through adolescence. A pilot study suggests that a four-day, intensive, residential

social skills training program was of benefit to troubled teen burn survivors even one year after the

training program was completed. The residential format, however, is expensive and impractical. This

project (1) cross-validates previous findings that a social skills training program is beneficial, i.e. results

in improved social competence and/or diminished behavioral problems, at one-year post-intervention;

and (2) tests the hypothesis that beneficial effects can be maintained or amplified by modifying the

format of the training to a schedule that more closely resembles the usual outpatient clinical schedule.

The goal of this project is to develop and validate an efficient and relatively inexpensive intervention

that can be utilized not only by burn-care teams but by health-care professionals in other specialties that

are concerned with assisting adolescents who are stigmatized by marred appearance or functional

impairment related to a medical condition.
NIDRR Program Directory FY 2009 - Participation and Community Living 4-41

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Development of an Internet-Based Self-Esteem Intervention for Women

with Disabilities

Baylor College of Medicine

Center for Research on Women with Disabilities

1475 West Gray, Suite 165

Houston, TX 77019

www.bcm.edu/crowd/

Principal Investigator: Margaret A. Nosek, PhD

Public Contact: 713/523-0909; Fax: 713/523-0466

Project Number: H133G080042

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 08 $200,000; FY 09 $200,000

Abstract: This project uses an innovative, Internet-based technology called SecondLife, a 3-D, multiuser virtual environment, to deliver self-esteem enhancement interventions to women with disabilities.

Project objectives include: (1) reviewing and refining previous self-esteem curricula; (2) developing

and testing a methodology to teach participants to navigate SecondLife, and interact with other individuals using real-time voice dialogue; and (3) converting the self-esteem enhancement intervention

into a format that uses real-time voice dialogue group interactions in SecondLife, supplemented with

on-screen information and illustrations. This Internet-based intervention allows people with disabilities

to access secure systematic online health promotion programs designed to increase ability to selfmanage chronic conditions and disabilities, achieve improved health and mental health outcomes, and

ultimately achieve full participation in their communities.
4-42 NIDRR Program Directory FY 2009 - Participation and Community Living

Small Business Innovation Research (SBIR), Phase II Small Business Innovation Research (SBIR), Phase II

Oregon

ADL Access: A Cognitively Accessible Software Application for

Augmented Self-Management of Activities of Daily Living

Assistech Systems, LLC

99 West 10th Avenue, Suite 397

Eugene, OR 97401

tkeating@eugeneresearch.org

Principal Investigator: Thomas Keating, PhD

Public Contact: 541/342-3763; Fax: 541/342-4319

Project Number: H133S090138

Start Date: October 01, 2009

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 09 $249,821

Abstract: Phase II of this project continues the development of an intelligent computer-based task

management application to augment the functional cognitive ability of individuals with disabilities in a

community living setting who cannot use text-based and complicated commercial personal management applications. The computer-based application is unique in that it is cognitively accessible and

includes intelligent features for context-aware task tracking. Users are able to manually enter data on

the accomplishment of personal care and household management tasks. The application also integrates

data on task accomplishment that are provided remotely by caregivers and by residential sensor networks, often referred to as “smart homes.” In either case, the user benefits from augmented selfmanagement ability. The goal is to produce a final product that is a research-tested, commercially

deployable software application with components for use on desktop, mobile, and Web platforms,

enabling individuals with cognitive disabilities to use innovative information technology for increased

and effective self-management.
Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Field Initiated Projects (FIPs) ................................................................................................................ 7

Disability Demographics

The ultimate goal of NIDRR’s disability demographics effort is to generate new

information that can be used by individuals with disabilities, service providers,

policymakers, and others working to identify and eliminate disparities in

employment, participation and community living, and health and function. NIDRR

has long funded studies that mine data to address the full range of social, health, and

economic facets of disability and that compare findings across data sources. There

are significant correlates with disability, such as aging; and there are a variety of links

between disability and other factors, including culture, race, and ethnicity. NIDRR

also nurtures methodological work that addresses identified gaps in data, such as the

sparse measurement of the interface between individual and environment.

NIDRR Program Directory FY 2009 - Disability Demographics 5-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Measuring

Rehabilitation Outcomes and Effectiveness

Feinberg School of Medicine

Northwestern University

Center for Rehabilitation Outcomes Research

Rehabilitation Institute of Chicago

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

www.ric.org/research/centers/cror/index.aspx

Principal Investigator: Allen W. Heinemann, PhD 312/238-2802

Public Contact: Trudy Mallinson, PhD 312/238-1623; Fax: 312/238-2383

Project Number: H133B040032

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 04 $700,000; FY 05 $700,000; FY 06 $700,000; FY 07 $700,000; FY 08

$700,000; FY 09 (No-cost extension through 11/30/2009)

Abstract: The purpose of this RRTC is to provide national leadership on the functional assessment,

outcomes, and health policy issues facing the medical rehabilitation community and the diverse consumers it seeks to serve. The Center conducts research; hosts forums for discussion; publishes in

rehabilitation, health policy, and consumer literature; trains researchers in rehabilitation-focused health

services research; and disseminates information to diverse consumer, provider, and academic audiences. The RRTC’s research seeks to (1) enable comparison of functional status measures across postacute settings so information can be provided to consumers and other rehabilitation stakeholders about

the outcomes and effectiveness of various post-acute care settings; (2) develop an innovative measure

of community participation in a meaningful, reliable, and valid manner in order to better describe the

long-term outcomes of rehabilitation services; (3) increase the efficiency of outcome data collection so

more resources can be directed to patient care; and (4) examine how format and presentation style

influences patient understanding of rehabilitation quality outcome indicators in order to provide information in ways that are helpful for consumers when selecting rehabilitation services. The project uses

recent developments in item response theory, computer adaptive testing, and stakeholder input in test

development, outcomes reporting, and quality indicator reporting. The expected outcomes are a rational basis for provision of rehabilitation services in post-acute care settings, increased efficiency of data

collection, a better measure of community participation, and outcome reporting that is responsive to

stakeholder needs. Dissemination activities include post-graduate and post-doctoral training opportunities, conferences, and a website that provides information on measurement of rehabilitation outcomes

across the continuum of post-acute settings.
5-4 NIDRR Program Directory FY 2009 - Disability Demographics

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Improving

Measurement of Medical Rehabilitation Outcomes

The Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-4572

Project Number: H133B090024

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 09 $850,000

Abstract: This project focuses on combining innovative measurement, data collection, and reporting

methods with practical concerns for usability, implementation, and multi-user communication. Measurement of the cognitive and environmental factors affecting participation is hampered by instruments

that are not tailored appropriately to persons with disabilities or for use in time-pressed clinical settings.

This project focuses on persons with traumatic brain injury, spinal cord injury, and stroke because these

groups experience complex cognitive, physical, sensory, and emotional impairments that limit access to

and use of standardized test protocols. Specific project goals include: (1) increasing the accessibility of

measures of cognitive function for use in rehabilitation settings so that consumers’ needs and outcomes

are documented; (2) examining the reliability, validity, and sensitivity of measures of cognitive function

for persons with disabilities within major item banks including the NIH Toolbox, the Executive Function Performance Test, NeuroQOL, TBI-QOL, SCI-QOL and SCI-CAT projects; (3) evaluating and

refining measures of barriers and facilitators of community participation enabling better evaluation of

the outcomes of rehabilitation services; (4) utilizing the large set of data to examine the validity of the

cognitive items on the Continuity and Record Evaluation Tool, a standardized patient assessment

instrument developed by the Centers for Medicare and Medicaid Services; and (5) evaluating the

extent to which the International Classification of Functioning, Disability, and Health (ICF) represents

disablement characteristics by mapping instruments collected as part of project activities to concepts

within the ICF. This RRTC conducts research; hosts forums for discussion; publishes in the rehabilitation science, health policy, and consumer literature; trains new researchers in rehabilitation-focused

health services research; and disseminates information to diverse scientific, clinician, consumer and

policymaker audiences.
NIDRR Program Directory FY 2009 - Disability Demographics 5-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Demographics and

Statistics

Cornell University

Ives Hall, Room 331

Ithaca, NY 14853

smb23@cornell.edu

www.disabilitystatistics.org

Principal Investigator: Harry Katz, PhD; Susanne Bruyère, PhD; Richard Burkhauser, PhD; Melissa

Bjelland, PhD; 607/255-9536

Public Contact: Susanne Bruyère, PhD 607/255-9536 (V); 607/255-2891 (TTY); Fax: 607/255-3274

Project Number: H133B031111

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $750,000; FY 04 $750,000; FY 05 $750,000; FY 06 $750,000; FY 07

$750,000; FY 08 (No-cost extension through 11/30/2009)

Abstract: The RRTC on Demographics and Statistics (Cornell StatsRRTC) bridges the divide between the sources of disability data and the users of disability statistics. The project conducts research

exploring the reliability of existing data sources and collection methods, and studies the potential to

improve current and future data collection efforts. In addition, the project utilizes existing data sources

to provide a comprehensive and reliable set of statistics, and increase access to and understanding of

how statistics can be used effectively to support decision making. Cornell StatsRRTC works with key

organizations to determine their needs and helps them maximize the use of disability statistics in their

ongoing efforts to improve the lives of people with disabilities and their families. As members of the

Cornell StatsRRTC, the American Association of People with Disabilities, the Center for an Accessible Society, and InfoUse provide vital expertise and resources needed to reach the users of disability

data and statistics. The Cornell StatsRRTC includes researchers from Cornell University, Mathematica

Policy Research, the Urban Institute, and the Institute for Matching People and Technology, all of

which bring extensive expertise in working with and creating sources of disability data.
5-6 NIDRR Program Directory FY 2009 - Disability Demographics

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Disability Statistics

and Demographics

CUNY Research Foundation

695 Park Avenue

New York, NY 10065

ecardoso@hunter.cuny.edu

Principal Investigator: John O’Neill, PhD; Elizabeth Cardoso, PhD; 212/772-4736

Public Contact: 212/772-4736; Fax: 212/772-5188

Project Number: H133B080012

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 08 $850,000; FY 09 $850,000

Abstract: The Rehabilitation Research and Training Center on Disability Statistics and Demographics

(StatsRRTC) facilitates evidence-based decision making in many different service and policy arenas to

benefit persons with disabilities, leading to improved education and employment outcomes.

StatsRRTC is a collaborative effort that brings together the lead investigators from three current

RRTCs: the StatsRRTC, Employment Service System RRTC, and Employment Policy RRTC; and

partners them with leaders in the disability advocacy community from the American Association of

People with Disabilities and leaders in vocational rehabilitation from the Council of State Administrators of Vocational Rehabilitation. Project activities include: (1) producing a set of guides to and metaanalyses of existing survey and administrative data sources; (2) conducting experiments to test alternative survey methods; (3) expanding and distributing the Annual Disability Statistics Compendium; (4)

expanding and revising the Source Guide for Surveying People with Disabilities; (5) providing an

information and referral technical assistance service; (6) providing stylized statistical estimates and

methodological consulting for key stakeholders as a follow-up to outreach and training activities; and

(7) conducting training designed to build capacity among consumers and within the vocational rehabilitation system and other support services systems related to data collection and analysis, secondary

data analysis, and reporting processes. Project goals include: improving the knowledge of and access

to existing data; generating the knowledge needed to improve future disability data collection; and

strengthening connections between the data from and regarding respondents, researchers, and decision

makers.
NIDRR Program Directory FY 2009 - Disability Demographics 5-7

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Colorado

Public Spending for Disability in the United States: A Comparative,

Longitudinal Study

University of Colorado Health Sciences Center

3825 Iris Avenue, Suite 200

Boulder, CO 80303

braddock@cu.edu

Principal Investigator: David L. Braddock, PhD

Public Contact: 303/492-0639

Project Number: H133G070163

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 07 $199,961; FY 08 $199,961; FY 09 $199,760

Abstract: This project is a comprehensive, longitudinal study of the characteristics, trends, and determinants of public spending for disability programs in the United States at the federal, state, and local

level. Data collection and analysis utilizes 28 disability program subcategories across 4 major activity

domains: income maintenance, general health care, long-term care, and special education. The

project’s comprehensive focus includes intellectual/developmental disabilities, mental illness, and

physical/sensory disability. The envisioned state-by-state and nationwide database on public spending

and program participation will be developed across fiscal years 1997-2008.
5-8 NIDRR Program Directory FY 2009 - Disability Demographics

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Maryland

Health Care Disparities in Access and Utilization among Individuals

with Disabilities

University of Maryland/Baltimore County

Maryland Institute for Policy Analysis and Research

1000 Hilltop Circle

Public Policy Building

Baltimore, MD 21250

nanmille@umbc.edu

Principal Investigator: Nancy Miller, PhD

Public Contact: 410/455-3889; Fax: 410/555-1184

Project Number: H133G090133

Start Date: October 01, 2009

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 09 $194,848

Abstract: This project analyzes survey data to identify health disparities among individuals with

disabilities. The project combines survey data from the National Health Interview Survey and the

Medical Expenditure Panel Survey, pooling six years of data to enhance sample size. Through multivariate analyses, it examines two system level factors (health insurance and patient/provider interactions), and three individual level factors (race and ethnicity, socioeconomic status, and disability type),

and their contribution to health care disparities. The measures of access and utilization mirror those

included in the series of Agency for Healthcare Research and Quality National Healthcare Disparities

reports. Researchers identify “doubly underserved” individuals: subpopulations with disabilities that

are disparately impacted by system and individual characteristics. The project also examines the extent

to which system and individual level factors differentially affect individuals with disabilities, relative to

individuals without disabilities.
NIDRR Program Directory FY 2009 - Disability Demographics 5-9

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Minnesota

Development and Use of a Multi-State Database on Individual

Outcomes and their Predictors for Persons with Intellectual and

Developmental Disabilities in the US

University of Minnesota

The Institute for Community Integration

204 Pattee Hall, 150 Pillsbury Drive, SE

Minneapolis, MN 55455

lakin001@tc.umn.edu

Principal Investigator: Charlie Lakin, PhD 612/624-5005

Public Contact: Sheryl Larson, PhD 612/625-6024; Fax: 612/625-6619

Project Number: H133G080029

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 08 $200,000; FY 09 $199,999

Abstract: The focus of this project is the National Core Indicators (NCI) Program, the most widely

used program of outcomes assessment for persons with disabilities in the US. Today 24 states participate in at least bi-annual NCI-based outcome research on a minimum of 400 randomly selected persons with intellectual and developmental (ID/DD) receiving publicly-financed services. Participating

states receive validated, psychometrically-tested instrumentation, technical assistance with random

selection procedures, standardized training of interviewers, and a centralized system of data quality

review, coding, and analysis. The purpose of the study is: (1) to merge and analyze the wholly congruent records of more than 10,000 randomly sampled adults from 15 purposely selected, nationally

distributed states to examine the interactions among individual characteristics, service delivery models

and settings, and individual outcomes and experiences; and (2) to carefully evaluate and refine, as

needed, the measures and methods of the NCI program to assure maximum validity and utility in

assessing quality of support to persons with ID/DD. Merging the wholly congruent state data sets

provides a unique opportunity to use and refine a research data set of incomparable size, flexibility,

national representation, and consistency with national goals for supports to persons with ID/DD.
5-10 NIDRR Program Directory FY 2009 - Disability Demographics

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Impact of Prospective Payment and Rehabilitation Outcomes

University of Texas Medical Branch

301 University Boulevard

Galveston, TX 77555

kottenba@utmb.edu

Principal Investigator: Kenneth J. Ottenbacher, PhD

Public Contact: 409/747-1637; Fax: 409/747-1638

Project Number: H133G080163

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 08 $199,386; FY 09 $198,085

Abstract: This project examines associations and trends in key rehabilitation outcomes before and

after the introduction of prospective payment (PPS). Research objectives include: (1) to examine the

impact of differences in the scoring and recording methods used to measure functional status pre-PPS

(FlM Instrument) and under the PPS (Inpatient Rehabilitation Facility-Patient Assessment Instrument);

and (2) to compare associations and trends in outcomes for three years pre-PPS (1999-2001) to three

years under the PPS (2002-2004). Outcomes examined include length of stay, functional status at

admission, discharge and follow-up (3-6 months), living setting pre-admission, incidence of hospital

readmission, and mortality. Research objectives are addressed using two data sets. The Uniform Data

System for Medical Rehabilitation (UDSMR) is used to examine the impact of changes in rating and

coding functional assessment data introduced with the PPS in 2002 (Objective 1). Association and

trends are explored using both the UDSMR database and Centers for Medicare and Medicaid Services

(CMS) files (Objective 2). The CMS information includes the Inpatient Rehabilitation Facilities-Patient

Assessment Instrument file, the Medicare Provider Analysis and Review file, and the Medicare Denominator file. The project examines data from major impairment groups including stroke, brain

dysfunction, spinal cord injury, neurological deficits, and orthopedic conditions. Hierarchical linear and

quasi-likelihood statistical models are used to analyze trends in data prior to PPS (three years) and

during PPS (three years) adjusting for relevant covariates (age, gender, race/ethnicity, comorbidities,

etc.). Finally, the project provides the information necessary for making evidence-based decisions

related to future changes in rehabilitation practice, payment, and policy.
NIDRR Program Directory FY 2009 - Disability Demographics 5-11

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Virginia

A National Assessment of the Rates and Correlates of Alcohol and

Other Drug Use by College Students with Disabilities

Virginia Commonwealth University

School of Allied Health Professions

Department of Rehabilitation Counseling

1112 East Clay Street

Richmond, VA 23298

Principal Investigator: Steven L. West, PhD, CRC

Public Contact: 804/827-0921; Fax: 804/828-1321

Project Number: H133G080123

Start Date: October 01, 2008

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 08 $199,999; FY 09 $200,000

Abstract: This project studies the rates of substance use and abuse, the correlates of such use, and the

impact of such use on college students with disabilities. These students face a number of challenges

that may inhibit their performance and limit their acquisition of college degrees. The failure to perform

to standard or to complete a college degree can have severe and long-lasting consequences in terms of

lifelong employment, community integration, and the overall health and well-being of persons with

disabilities. Although there are many barriers to the successful acquisition of a college degree, much of

the current research in the field of higher education centers on the negative effects of substance use and

abuse. Use of alcohol and other drugs by college students, regardless of disability, is associated with a

number of negative outcomes. Notable among these are school failure and drop-out, a wide variety of

health concerns, and a number of legal issues. To date, little is known about the rates of substance use

and abuse by college students with disabilities. Research with general samples of people with disabilities note that such individuals abuse alcohol and other drugs at rates 10 to 20 times that of the general

population; preliminary studies with students with disabilities suggest that they are also heavy users of

alcohol and other drugs. By detailing the state of affairs nationally, this study allows for a broad understanding of the rates of substance use by college students with disabilities; details the impact of such

use on academic performance, health and well-being; allows for the determination of factors related to

both substance use and abstinence; aids in the development of prevention efforts; and provides aggressive dissemination of information on such issues to a wide audience of consumers and service providers.
5-12 NIDRR Program Directory FY 2009 - Disability Demographics

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Washington

Assessing the Impact of Medicare-D on SSDI Beneficiaries

Washington State University

Department of Health Policy and Administration

P.O. Box 1495

Spokane, WA 99210

www.spokane.wsu.edu/Academics/Health_Sciences/HPA/medicare/inde x.asp

Principal Investigator: James J. Kennedy, PhD

Public Contact: 509/368-6971; Fax: 509/358-7984

Project Number: H133G070055

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 07 $199,955; FY 08 $199,706; FY 09 $199,830

Abstract: This project employs a multi-method, repeated-measures design to assess the impact of

Medicare-D on younger beneficiaries in four distinct but interrelated studies: (1) quantitative analysis

of access and utilization rates among beneficiaries under age 65, using successive panels of the Medicare Current Beneficiary Survey; (2) qualitative research on the impact of Medicare benefits on employment and continuity of medical care, based on repeated focus groups at two sites; (3) formulary

analysis of coverage for critical medications among competing private Medicare Advantage and

Prescription Drug Plans in Washington State; and (4) ongoing policy analysis of legislative and regulatory changes in Medicare and SSDI. Tracking the impact of the new drug benefit is particularly important for younger adults with disabilities who become eligible for Medicare through the Social Security

Disability Insurance (SSDI) program. Although younger beneficiaries comprise only 14.1 percent of

the total Medicare population, they account for about 17 percent ($71.6 billion) of total program

expenditures. Despite their economic and political importance, younger beneficiaries with disabilities

are routinely overlooked in published Medicare research and policy analysis. Through dissemination of

research findings, this project enhances awareness in the research and policy community of the unique

Medicare-D concerns of younger beneficiaries with disabilities, consistent with the ultimate goal of

improving access to affordable health services for people with disabilities.
Contents

Disability and Rehabilitation Research Projects .................................................................................... 3

Field Initiated Projects (FIPs) .............................................................................................................. 10

Utilization Projects .............................................................................................................................. 11

Knowledge Translation

For NIDRR, knowledge translation (KT) encompasses the multidimensional, active

process of ensuring that new knowledge gained through the course of research

ultimately improves the lives of people with disabilities and furthers their

participation in society. KT involves not only knowledge validation and

dissemination but also the transfer of technology, particularly products and devices,

from the research and development setting to the commercial marketplace to make

possible widespread utilization of the products or devices.

NIDRR Program Directory FY 2009 - Knowledge Translation 6-3

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Alabama

National Spinal Cord Injury Statistical Center (NSCISC)

University of Alabama/Birmingham

SRC 515

1717 Sixth Avenue, South

Birmingham, AL 35249-7330

nscisc@uab.edu

www.uab.edu/nscisc

Principal Investigator: Yuying Chen, MD, PhD 205/934-3320

Public Contact: Vicki Farris 205/934-5049; Fax: 205/934-2709

Project Number: H133A060039

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 06 $625,000; FY 07 $625,000; FY 08 $625,000; FY 09 $625,000

Abstract: The National Spinal Cord Injury Statistical Center (NSCISC) at the University of Alabama

at Birmingham has been the home of the National Spinal Cord Injury Model Systems (SCIMS) Data

Center since 1983. The NSCISC continues and expands its current activities and implements innovative new tasks to accomplish the following goals: (1) maintenance of the SCIMS database, (2) highquality data in the SCIMS database, (3) high quality data collected from database participants of all

racial/ethnic backgrounds, (4) rigorous SCIMS database research conducted by all investigators, (5)

enhanced continuity of the SCIMS database, and (6) improved database operations through collaboration. In particular, the project takes advantage of the latest Internet and centralized database technology

to rewrite the database software from its current distributed format to a centralized web-based system,

which will significantly improve the capability to manage new data module projects, increase costefficiency, improve quality control, and enhance data security. To promote best research practices

across the SCIMS, the Center establishes an annual online comprehensive training curriculum for

SCIMS data collectors, conducts evaluative site visits, publishes a guide regarding proper use of the

database, and refines standards on culturally appropriate SCI research. The project includes subcontracts with formerly-funded SCIMS centers to continue data collection for patients previously enrolled

in their research. The Center continues to benefit from the active involvement of persons with SCI and

productive partnerships with other NIDRR-funded centers in the design, implementation, and evaluation of these activities.
6-4 NIDRR Program Directory FY 2009 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

Innovative Knowledge Dissemination and Utilization for Disability and

Professional Organizations and Stakeholders

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

psyrehab@bu.edu

Principal Investigator: Marianne Farkas, ScD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133A050006

Start Date: October 01, 2005

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 05 $498,878; FY 06 $493,698; FY 07 $499,966; FY 08 $499,947; FY 09

$491,473

Abstract: This project is working collaboratively with NIDRR, professional and consumer organizations, and stakeholders to develop, test, and apply a process of research standards development, implementation, and related information dissemination strategies that allows end-users in the rehabilitation

field to make informed choices based on the perceived utility of the research available, and in doing so,

promote utilization of rehabilitation research. The project uses well-developed standards to determine

which rehabilitation research results are of sufficient rigor to be worthy of dissemination. Thus establishing an ongoing, scientific, easily accessible, central resource to help professionals utilize what

works in the disability field. The project has six specific goals: (1) Producing quality standards for

rating rehabilitation research rigor and meaning. A broad range of experts and various stakeholders

participate in consensus building regarding adapting existing standards for rating research rigor, and

create standards for meaning (perceived relevance). In this way, information disseminated will not only

be assessed as to its scientific rigor but also with respect to its relevance and applicability to various

end-users, thus promoting utilization of the research. (2) Project staff, along with NIDRR staff, professional and constituent organizations, and other Knowledge Translation projects assist in developing

standard topic selection criteria and in selecting topical areas for information products. (3) Producing

relevant information products describing the quality and implications of rehabilitation research studies

based on the developed standards. Constituent organizations participate in developing dissemination

plans to translate research syntheses in the identified topical areas into information products relevant for

appropriate constituencies. (4) Creating and testing a prototype interactive website, The Right to Know

Clearinghouse, to implement innovative dissemination strategies for key groups. (5) Evaluating the

output, perceived utility, and outcomes of the Knowledge Translation project using the NIDRR logic

model. Evaluated outcomes include an increase in awareness of research among constituency groups,

an increase in understanding of research rigor and meaning among those groups, and an increase in the

use of research information by end-users. (6) Disseminating the project’s findings to stakeholders.
NIDRR Program Directory FY 2009 - Knowledge Translation 6-5

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Center on Knowledge Translation for Technology Transfer

University at Buffalo

The State University of New York

Center for Assistive Technology

100 Sylvan Parkway, Suite 400

Amherst, NY 14228

kt4tt.buffalo.edu

Principal Investigator: Joseph Lane 716/204-8606, x211

Public Contact: 716/204-8606 (V); 800/628-2281 (TTY); Fax: 716/204-8610

Project Number: H133A080050

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 08 $999,998; FY 09 $999,994

Abstract: The objective of this project is to study and apply the theory and practice of knowledge

translation (KT) to the knowledge outputs of NIDRR technology grantees. Goals of this project are

improved understanding of barriers to accomplishing KT for technology transfer (TT) and carriers to

overcome them; advanced knowledge of the best models, methods, and measures for accomplishing

KT for TT; and increased utilization of the validated best practices for KT for TT by the NIDRR

grantees. Research Project 1 synthesizes current knowledge about KT theory and practice related to

accomplishing technology transfer outcomes; establishes parallel models of practices for both knowledge translation and technology transfer; and creates an operational framework for the Knowledge To

Action (KTA) model, by applying the technology transfer methods and measures promulgated by the

Product Development Manager’s Association (PDMA), to create counterparts in knowledge translation. Project 2 establishes parameters for defining new knowledge as an innovation, and establishes

Grantee Innovation Profiles for participating RERC and SBIR grantees in wheeled mobility, sensory

disability, and environmental access technology areas; and interviews representatives for the six categories of knowledge users (i.e., researchers, manufacturers, clinicians, policy makers, consumers,

brokers), to establish Knowledge Value Profiles for each user category. Research Project 3 conducts a

series of six intervention studies in the three technology areas. They communicate a series of randomly

selected innovations to the six user categories, either through standard knowledge dissemination

practices, or through knowledge translation practices applied through the operational KTA model.

Development Project 1 conducts a series of at least six technology transfer demonstration projects,

working in collaboration with corporate partners, while RERC and/or SBIR grantees interact as

participant observers. Development Project 2 creates a knowledgebase consisting of a data base

structure customized for access by each category of knowledge user based on their respective value

systems, along with all DRRP training materials publicly available in accessible and usable forms. A

Utilization Project encourages NIDRR grantees to use the DRRP’s materials, and implement the

operational KTA model, through coordinated dissemination, training, and technical assistance projects.

This project also promotes the diffusion and utilization of innovative research-based knowledge by

targeting each of the six categories of knowledge users with a parallel coordinated program of the same

multiple methods.
6-6 NIDRR Program Directory FY 2009 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Center for International Rehabilitation Research Information and

Exchange (CIRRIE-2)

University at Buffalo

The State University of New York

Center for Assistive Technology

515 Kimball Tower

Buffalo, NY 14214

ub-cirrie@buffalo.edu

cirrie.buffalo.edu

Principal Investigator: John Stone, PhD 716/829-3141, ext. 125

Public Contact: Marcia E. Daumen 716/829-3900, ext. 146; Fax: 716/829-2211

Project Number: H133A050008

Start Date: November 01, 2005

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 05 $500,000; FY 06 $500,000; FY 07 $500,000; FY 08 $500,000; FY 09

$500,000

Abstract: The Center for International Research Information and Exchange (CIRRIE-2) offers a

comprehensive approach to address the needs of researchers, practitioners, and consumers for researchbased information from international sources. CIRRIE-2 objectives include: Expanding the existing

Database of International Rehabilitation Research; developing an online, multi-lingual, international

encyclopedia of rehabilitation in English, Spanish, and French in collaboration with the Quebec

Institute for Physical Rehabilitation; sponsoring an international conference and workshops on the

International Classification of Functioning, Disability, and Health (ICF); creating a Community of

Practice on the ICF; and cross mapping ICF terms to the thesaurus that is used to search both CIRRIE

and REHABDATA databases. CIRRIE-2 sponsors workshops on the ICF in cooperation with the

American Psychological Association and the WHO North American Collaborating Center (NACC),

and plans an international conference on the ICF in Year 2, in collaboration with the NACC. Additionally, CIRRIE develops new pre-service initiatives in the area of cultural competence for disability

service providers, including: curriculum guides and monographs; and conducting an international

conference on Providing Culturally Competent Disability Services in collaboration with Toronto-based

Joint Centre of Excellence on Research and Immigration and Settlement. CIRRIE-2 supports collaborative activities between the US and other countries by conducting four types of international exchange

programs: (1) short-term exchanges of individuals, (2) institutional linkage exchanges, (3) a program

for Minority Serving Institutions, and (4) a program for information gathering for dissemination to US

audiences.
NIDRR Program Directory FY 2009 - Knowledge Translation 6-7

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

National Center for the Dissemination of Disability Research (NCDDR)

SEDL

4700 Mueller Boulevard

Austin, TX 78723

lin.harris@sedl.org

www.ncddr.org

Principal Investigator: John Westbrook, PhD

Public Contact: Lin Harris, Information Specialist 800/266-1832 (V/TTY); Fax: 512/476-2286

Project Number: H133A060028

Start Date: January 01, 2006

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 06 $750,000; FY 07 $750,000; FY 08 $750,000; FY 09 $750,000

Abstract: The goal of the National Center for the Dissemination of Disability Research (NCDDR) is

to promote the utilization of research results developed through NIDRR grants/contracts. Major areas

of work of the NCDDR include: (1) Research designed to collect information that assists in identifying

the needs and most likely strategies that assist in matching dissemination practices with intended user

audiences. Activities include conducting annual surveys, focus groups, surveys, and annual reporting

of state-of-the-art information about NIDRR grantees’ dissemination successes. (2) Demonstration

conducted to determine the effectiveness of new strategies and approaches in achieving intended

dissemination and utilization outcomes. Activities include developing and using innovative web-based

mechanisms, increasing common portal access to substantive English and Spanish language resources

of grantees, and developing outreach strategies for under-represented audiences. (3) Dissemination and

Utilization implemented not to support the simple distribution of materials and other resources but

rather the use of research outcomes in meaningful ways by those that can most benefit from their use.

Activities include production of print and web-based informational products, networking of grantees to

maximize outreach impact, and developing networks with a variety of research stakeholder groups for

information and strategy exchanges. (4) Technical Assistance provided to NIDRR grantees to build

understanding, skills, and resources related to the dissemination and utilization of their disability

research outcomes. Activities include providing onsite and offsite assistance in planning effective

dissemination efforts, providing direct assistance to grantees with targeted dissemination efforts, and

assisting in designing evaluation strategies to measure dissemination and utilization outcomes.
6-8 NIDRR Program Directory FY 2009 - Knowledge Translation

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Virginia

Disability and Business Technical Assistance Centers: Coordination,

Outreach, and Research Center

Virginia Commonwealth University

Department of Rehabilitation Counseling

1112 East Clay Street; P.O. Box 980330

Richmond, VA 23298-0330

btmcmaho@vcu.edu

www.adata.org

Principal Investigator: Brian T. McMahon, PhD 804/827-0917

Public Contact: Cynthia Young 804/828-3875; Fax: 804/828-1321

Project Number: H133A060087

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 06 $849,957; FY 07 $849,968; FY 08 $849,991; FY 09 $849,968

Abstract: This coordination, outreach, and research center (CORC) expands and enhances the activities of the regional system of Disability and Business Technical Assistance Centers (DBTACs), guided

by the principles of evidence-based practice and knowledge translation, with a dual emphasis on

communities of practice and demand-side job placement. The CORC objectives are to: (1) improve

public access to ADA information by creating a definitive ADA web site, DBTAC-IN, which includes

a compendium of DBTAC materials, databases, publications, products, tools, and activities; (2) create

a CORC Research Review Board to coordinate, support, and review new evidence-based products

and publications, including original CORC research, and assess their effectiveness and impact on

policy and practice; (3) increase the research capacity of the regional DBTACs network to both conduct and utilize quality research by modeling such behavior and by providing direct and meaningful

consultation to regional DBTACs to facilitate their success; (4) coordinate dissemination of regional

DBTAC and CORC publications and products in concert with appropriate NIDRR research and

dissemination centers; (5) translate DBTAC evidence reports, publications, and products into practice

guidelines, quality improvement products, and technical assistance tools; and (6) host five planning

conferences with regional DBTACs, and three research conferences in Project Years III, IV, and V in

order to demonstrate the added value of evidence-based practice in the DBTAC network. Original

CORC research has an employment emphasis. CORC activities include 19 original research projects

involving the National EEOC ADA Research Project, 15 training activities in collaboration with the

regions, dissemination and outreach projects, research and consultation with Regional DBTACs,

technical assistance projects, and program evaluation.
NIDRR Program Directory FY 2009 - Knowledge Translation 6-9

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

Model Systems Knowledge Translation Center (MSKTC)

University of Washington

Center for Human Development and Disability

Center for Technology and Disability Studies

1959 NE Pacific Street, HSB BB-919

Box 356490

Seattle, WA 98195

msktc@u.washington.edu

msktc.washington.edu

Principal Investigator: Kurt Johnson, PhD

Public Contact: 206/543-3677; Fax: 206/543-4779

Project Number: H133A060070

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 06 $598,163; FY 07 $598,833; FY 08 $599,876; FY 09 $599,352

Abstract: The Model Systems Knowledge Translation Center (MSKTC) facilitates the dissemination

of research-to-practice and consumer education for the model systems programs in traumatic brain

injury (TBI), spinal cord injury (SCI), and burn injury. The MSKTC knowledge translation and

dissemination efforts focus on research conducted by the model systems programs, identified best

practices, and clinician and consumer education materials developed by the model systems. The

MSKTC also works collaboratively with members of the MSKTC Research Advisory Board and

experts in TBI, SCI, and burn injury to conduct systematic reviews of key areas of rehabilitation

research relevant to the model systems projects. The MSKTC is housed within the University of

Washington’s Center for Technology and Disability Studies in the Center for Human Development

and Disability and builds on previously funded NIDRR knowledge translation efforts.
6-10 NIDRR Program Directory FY 2009 - Knowledge Translation

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

EVIDAAC: A Database of Appraised Evidence in Augmentative and

Alternative Communication

Northeastern University

Department of Speech, Language, Audiology, and Pathology

151B Forsyth

Boston, MA 02115-5000

r.schlosser@neu.edu

www.evidaac.com

Principal Investigator: Ralf W. Schlosser, PhD

Public Contact: 617/373-3785; Fax: 617/373-8756

Project Number: H133G070150

Start Date: October 01, 2007

Length: 36 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 07 $195,525; FY 08 $199,910; FY 09 $198,889

Abstract: This project develops EVIDAAC, an accessible and usable database of appraised research

evidence in augmentative and alternative communication (AAC) for practitioners (speech-language

pathologists, occupational therapists, physical therapists, special educators, rehabilitation engineers,

etc.), individuals using AAC, and their families. EVIDAAC provides access to pre-filtered evidencebased practice by critically appraising studies (randomized control trials [RCTs], non-RCTs, case

series, single-subject experimental designs) and systematic reviews. This saves time and reduces the

skill-burden associated with having to appraise evidence, a documented barrier to the utilization of

EBP. EVIDAAC is developed in accordance with published quality criteria for health-related web sites

using formative and process evaluation. Accessible web design principles are integrated into the

development of the database, with regular assessment using Web Accessibility Initiative principles and

guidelines. Its usability is tested with rigorous technologies, including structured usability tasks in

controlled laboratory situations and the determination of utilization patterns in real-life circumstances

via web-log analysis. Results gleaned feed back into improving the database.
NIDRR Program Directory FY 2009 - Knowledge Translation 6-11

Utilization Projects Utilization Projects

Maryland

National Rehabilitation Information Center (NARIC)

HeiTech Services, Inc.

8201 Corporate Drive, Suite 600

Landover, MD 20785

naricinfo@heitechservices.com

www.naric.com

Principal Investigator: Mark X. Odum

Public Contact: Information Specialists 800/346-2742 (V); 301/459-5984 (TTY); 301/459-5900 (V);

Fax: 301/459-4263

Project Number: ED-08-CO-0095

Start Date: June 30, 2008

Length: 24 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 08 $828,331; FY 09 $853,674

Abstract: The National Rehabilitation Information Center (NARIC) maintains a research library of

more than 65,000 documents and responds to a wide range of information requests, providing facts

and referral, database searches, and document delivery. Through telephone and online information

referral, NARIC disseminates information gathered from NIDRR-funded projects, other federal

programs, and from journals, periodicals, newsletters, films, and videotapes. NARIC maintains

REHABDATA, a bibliographic database on rehabilitation and disability issues, both in-house and

online. Users are served by telephone, mail, electronic communications, or in person. NARIC also

prepares and publishes the annual NIDRR Program Directory, available in database format from

NARIC’s web site.
6-12 NIDRR Program Directory FY 2009 - Knowledge Translation

Utilization Projects Utilization Projects

Maryland

ABLEDATA

ORC Macro

8630 Fenton Street, Suite 930

Silver Spring, MD 20910

abledata@macrointernational.com

www.abledata.com

Principal Investigator: Katherine Belknap 301/608-8998, ext. 105

Public Contact: 800/227-0216 (V); 301/608-8998 (V); 301/608-8912 (TTY); Fax: 301/608-8958

Project Number: ED-04-CO-0018/0007

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 08 $779,573; FY 09 $779,573

Abstract: This project maintains and expands the ABLEDATA product information database, develops information and referral services that are responsive to the special technology product needs of

consumers and professionals, and provides the data to major dissemination points to ensure wide

distribution and availability of the information to all who need it. The ABLEDATA database contains

information on more than 34,000 commercially produced and custom-made assistive devices. Requests

for information are answered via telephone, mail, electronic communications, or in person.
Contents

ADA Technical Assistance Projects ...................................................................................................... 3

ADA Technical Assistance Programs

The Americans with Disabilities Act (ADA) opens more opportunities for persons

with disabilities. It also places certain responsibilities on employers, transit and

communication systems, state and local governments, and public accommodations.

To assist covered parties to understand and comply with the ADA, NIDRR has

funded a network of grantees to provide information, training, and technical

assistance to businesses and agencies with duties and responsibilities under the ADA.

NIDRR Program Directory FY 2009 - ADA Technical Assistance Programs 7-3

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region I - CT, ME, MA, NH, RI, and VT

DBTAC-New England ADA Center — Region I

Institute for Human Centered Design

200 Portland Street, First Floor

Boston, MA 02114

adainfo@newenglandada.org

adaptiveenvironments.org/neada/site/home

Principal Investigator: Valerie Fletcher 617/695-1225, ext. 226

Public Contact: 800-949-4232 (V/TTY in CT, ME, MA, NH, RI, and VT), 617/695-1225 (V/TTY);

Fax: 617/482-8099

Project Number: H133A060092

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $1,026,116; FY 07 $1,033,136; FY 08 $1,053,190; FY 09 $1,075,716

Abstract: The New England DBTAC provides technical assistance, training, and information dissemination for Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. This

DBTAC continues these core services that are the bedrock of voluntary ADA compliance but also

restructures the program to be more responsive and rigorous with an expectation of improving employment outcomes for people with disabilities. A set of partnerships and collaborations, led by the Center

for Labor Market Studies at Northeastern University, conducts evidence-based research with collaborating organizations to implement comprehensive intervention and descriptive research strategies. The

target populations for this DBTAC are students with disabilities and their diverse support services at

institutions of higher education, and employers in demand-driven, high growth industries in New

England. Goals for this DBTAC are to: improve understanding of rights and responsibilities under the

ADA; identify innovative approaches and tested solutions that increase employment; produce and

disseminate a “Guide to New England Jobs” for individuals with disabilities; publish results of findings

in refereed journals; and utilize networks of new collaborators to disseminate information, materials,

and research findings.
7-4 NIDRR Program Directory FY 2009 - ADA Technical Assistance Programs

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region II - NJ, NY, PR, and VI

Disability and Business Technical Assistance Center — Northeast

Cornell University

Employment and Disability Institute

School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853-3901

northeastada@cornell.edu

www.northeastada.org

Principal Investigator: Susanne Bruyère, PhD, Project Director; Wendy Strobel Gower; 607/255-

6751

Public Contact: Wendy Strobel Gower, Project Coordinator 607/255-6751; Fax: 607/255-2763

Project Number: H133A060088

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $1,105,000; FY 07 $1,105,000; FY 08 $1,105,000; FY 09 $1,105,000

Abstract: The Disability and Business Technical Assistance Center - Northeast (DBTAC-Northeast)

serves Region II to ensure the full implementation of the ADA through its core activities: technical

assistance, training, information dissemination, and research. The DBTAC-Northeast target audiences

include individuals with disabilities and their caregivers, employers, businesses, state and local government entities, and educational institutions in Federal Region II (New York, New Jersey, Puerto Rico,

and the US Virgin Islands). Information dissemination activities include a comprehensive website, a

newsletter, technical bulletins, and materials dissemination through networks and regional partners.

Technical assistance activities focus on responding to requests for information received via an 800

phone line, submitted via the website, and received through email. Training activities are comprehensive in both approach and delivery, designed to meet the needs of educational organizations, employers, advocacy organizations, businesses, Title II organizations, individuals with disabilities, caregivers,

and disability service organizations. Topics include advanced ADA issues related to employment,

physical and programmatic access, state and federal laws and codes and relevant ADA court decisions,

and accessible technology. Training is offered through a variety of open-enrollment programs at the

state and local levels as well as provided on-site. Lastly, the DBTAC-Northeast team conducts targeted, rigorous research and evaluation activities designed to inform and develop innovative and

effective approaches addressing critical disability questions to help ensure that services and interventions delivered by the DBTAC-Northeast are effective and relevant to the needs of the individuals and

communities it serves.
NIDRR Program Directory FY 2009 - ADA Technical Assistance Programs 7-5

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region III - DC, DE, MD, PA, VA, and WV

DBTAC: Mid-Atlantic ADA Center

TransCen, Inc.

451 Hungerford Drive, Suite 700

Rockville, MD 20850-4151

adainfo@transcen.org

www.adainfo.org

Principal Investigator: Richard G. Luecking, PhD 301/424-2002

Public Contact: Marian S. Vessels, Project Director 800/949-4232 (V/TTY, in DC, DE, MD, PA,

VA, and WV); 301/217-0124 (V/TTY); Fax: 301/217-0754

Project Number: H133A060085

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $1,098,929; FY 07 $1,098,929; FY 08 $1,098,929; FY 09 $1,098,929

Abstract: The DBTAC: Mid-Atlantic ADA Center provides technical assistance, training, and information dissemination for Delaware, the District of Columbia, Maryland, Pennsylvania, Virginia, and

West Virginia. The major goals of this DBTAC are to: improve the understanding by individuals and

entities of their rights and responsibilities under the ADA; build the capacity of local and state entities

to provide technical assistance and training on the ADA and related topics; improve employment

outcomes of people with disabilities; and increase access by people with disabilities to lodging and

other services from, as well as employment opportunities within, the high growth hospitality industry.

There are four major areas of activity: (1) training, technical assistance, and dissemination to general

ADA constituencies on all titles of the Act; (2) training and technical assistance to individual statewide

coalitions to increase the capacity of other organizations to provide locally focused technical assistance

on all titles of the ADA; (3) identification of problematic areas where research and informational

campaigns might aid in the avoidance of or solutions to problems associated with the ADA, especially

in the high growth hospitality industry; and (4) research on organizational and individual factors that

affect decisions to provide reasonable accommodations and the resulting employment outcomes.
7-6 NIDRR Program Directory FY 2009 - ADA Technical Assistance Programs

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region IV - AL, FL, GA, KY, MS, NC, SC, and TN

DBTAC: Southeast ADA Center — Region IV

Syracuse University

Burton Blatt Institute

1419 Mayson Street

Atlanta, GA 30324

sedbtacproject@law.syr.edu

www.sedbtac.org

Principal Investigator: Peter D. Blanck, PhD, JD; Shelley Kaplan; 315/443-9703 (Blanck); 404/541-

9001 (Kaplan);

Public Contact: Shelley Kaplan, Project Director 800/949-4232 (V/TTY, in AL, FL, GA, KY, MS,

NC, SC, and TN); 404/541-9001 (V/TTY); Fax: 404/541-9002

Project Number: H133A060094

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,105,000; FY 07 $1,105,000; FY 08 $1,105,000; FY 09 $1,105,000

Abstract: The DBTAC: Southeast ADA Center (Southeast DBTAC) provides technical assistance,

training, and information dissemination for Alabama, Florida, Georgia, Kentucky, Mississippi, North

Carolina, South Carolina, and Tennessee. Southeast DBTAC meets ADA-related information, training, and technical assistance needs of multiple public and private stakeholders through the provision of

five core services: (1) information dissemination, (2) education and training, (3) technical assistance,

(4) information referral, and (5) public awareness events. The Southeast DBTAC’s research plan

extends the state of knowledge about employer corporate culture and business practices, and ADA

impact on civic action to reduce and eliminate barriers to full civic, social, and economic participation

for Americans with disabilities. The Southeast DBTAC is lead by a consortium that includes four

nonprofit institutions recognized for their knowledge of civil rights protections and impact across

covered environments, access, and use of assistive technology (AT), employment and independent

living, and consumer self-direction and advocacy. The organizations with a history of collaborative

activity are Burton Blatt Institute of Syracuse University, Center for Assistive Technology and Environmental Access (CATEA) at Georgia Institute of Technology, Living Independence for Everyone of

Jackson, Mississippi, and Partnerships in Assistive Technology of North Carolina. To continue responsiveness to employers, large and small within the region, the Southeast DBTAC established a Business

Leadership Council (BLC) with ten stakeholders with a record of hiring and advancing workers with

disabilities. The BLC provides advice and important linkages to the business community throughout

the southeast to exchange research findings and knowledge that improves opportunities for employment for persons with disabilities. Half of core staff are persons with disabilities and/or represent

historically underrepresented groups because of race, gender, national origin, and age. People with

disabilities continue to direct core components of the Center’s activities related to training and technical

assistance and information dissemination. The Southeast DBTAC has an extensive collaborative

network of over 99 local affiliates in all 8 states in the region that builds on the strengths and experiences of a diverse cross-section of individuals with and without disabilities representing disability,

business, and governmental entities.
NIDRR Program Directory FY 2009 - ADA Technical Assistance Programs 7-7

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region V - IL, IN, MI, MN, OH, and WI

DBTAC: Great Lakes ADA Center

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Room 405

Chicago, IL 60608-6904

gldbtac@uic.edu

www.adagreatlakes.org

Principal Investigator: Robin A. Jones, Project Director 312/996-1059

Public Contact: 800/949-4232 (V/TTY, in IL, IN, MI, MN, OH, and WI); 312/413-1407 (V/TTY);

Fax: 312/413-1856

Project Number: H133A060097

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,105,000; FY 07 $1,105,000; FY 08 $1,105,000; FY 09 $1,105,000

Abstract: The Great Lakes Disability and Business Technical Assistance Center (DBTAC) promotes

awareness of the ADA to targeted audiences through provision of technical assistance, training, and

material dissemination regarding the ADA. In addition, the Center engages in rigorous, researchrelated activities that contribute to a research agenda focused on but not limited to (1) the employment

of people with disabilities, and (2) the impact that individual knowledge and experience with the

utilization of technology in postsecondary education has on the employment outcomes of individuals

with disabilities as they transition from postsecondary education to employment. The Great Lakes

DBTAC provides timely, responsive, and proactive services utilizing a comprehensive service delivery

model. The technical assistance, training, and information needs of the individual, employers, specifically those in high growth industries, business, government, educational entities, and disabled veterans

employment programs are a part of on-going needs assessment, and programs and activities are tailored

accordingly. The Center tracks emerging issues which are of interest to its target audiences and develops strategies to address their informational and technical assistance needs. Strategies include: (1)

operation of a toll-free number for responding to questions or providing referral; (2) enhancement of

the Center’s existing network of individuals and organizations who can provide on-site consultation,

technical assistance, and training as needed; (3) training events and activities at the local, state, and

regional level focused on raising awareness of the ADA and disseminating the findings which result

from the Center and its collaborators’ research-related activities; (4) identification and dissemination of

best practices related to the recruitment, hiring, and retention of qualified individuals with disabilities

by employers and employment training programs; and (5) utilization of technology to promote the

exchange of information including a web site, listservs, e-newsletters, multifaceted distance learning

strategies and techniques, self-paced learning, and web-based assessment tools. Collaborators include

but are not limited to the network of DBTACs, relevant NIDRR-funded projects, State Technology

Act grantees, and Department of Labor grantees (WIA, Small Business Development Centers, JAN,

etc.), as well as employer and business organizations such as the Business Leadership Network,
7-8 NIDRR Program Directory FY 2009 - ADA Technical Assistance Programs

Society of Human Resource Management, State Chambers of Commerce, and National Federation of

Independent Business chapters. In addition to these groups, the Center continues to act as a catalyst for

activities that take place at the local and state level through collaboration between the business, government, and disability communities to promote awareness and voluntary compliance with the ADA. At

the regional level, the Center relies heavily on the guidance of State Steering Committees and incorporates new structures to inform and direct the Center’s activities including the newly established Regional Business Advisory Committee.
NIDRR Program Directory FY 2009 - ADA Technical Assistance Programs 7-9

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VI - AR, LA, NM, OK, and TX

Southwest Disability and Business Technical Assistance Center

(Southwest DBTAC-Region VI)

The Institute for Rehabilitation and Research (TIRR)

Independent Living Research Utilization (ILRU)

2323 South Shepherd, Suite 1000

Houston, TX 77019-7024

www.dlrp.org

Principal Investigator: Wendy Wilkinson, Project Director

Public Contact: 800/949-4232 (V/TTY, in AR, LA, NM, OK, and TX); 713/520-0232 (V); 713/520-

5136 (TTY); Fax: 713/520-5785

Project Number: H133A060091

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 06 $1,104,007; FY 07 $1,104,738; FY 08 $1,104,885; FY 09 $1,104,796

Abstract: The Southwest DBTAC provides a comprehensive array of training, technical assistance,

and dissemination services on the ADA and other disability-related laws in the five states of Federal

Region VI. The goals of these activities are to improve the employment outcomes of individuals with

disabilities and maximize their full inclusion into society. Through a collaborative structure of partners,

the Southwest DBTAC provides an array of services including: (1) research activities that identify

impediments to compliance with the ADA and individuals’ access to technology, postsecondary

education, and the workforce, as well as tested solutions and innovative approaches to eliminate these

impediments; (2) training activities that offer comprehensive, accurate, and timely information on the

ADA’s requirements, developments in case law, policy, and implementation to promote compliance

with the ADA; (3) dissemination activities that increase knowledge about the ADA and DBTAC

services through an effective, coordinated resource network for Region VI; and (4) technical assistance

activities that respond to the needs of individuals and entities on the ADA and foster the development

of new and promising practices that can be shared with others. SEDBTAC’s network includes such

organizations as the New Mexico Technology Assistance Project, the Southwest Education Development Laboratory, Arkansas Technology and Curriculum Access Center, Bureaus of Apprenticeship

Training or State Apprenticeship Councils in each state, Valley Association of Independent Living,

North Harris College, and other organizations and businesses that have demonstrated success in

improving the lives of individuals with disabilities.
7-10 NIDRR Program Directory FY 2009 - ADA Technical Assistance Programs

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VII - IA, KS, MO, and NE

DBTAC - Great Plains ADA Center — Region VII

University of Missouri/Columbia

100 Corporate Lake Drive

Columbia, MO 65203

ada@missouri.edu

www.adaproject.org

Principal Investigator: Jim de Jong, Project Director

Public Contact: 800/949-4232 (V/TTY, in IA, KS, MO, and NE); 573/882-3600 (V/TTY); Fax: 573/

884-4925

Project Number: H133A060089

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $458,330; FY 07 $1,100,000; FY 08 $1,100,000; FY 09 $1,100,000

Abstract: The Great Plains DBTAC provides technical assistance, training, and information dissemination for Iowa, Kansas, Missouri, and Nebraska. The Center provides the core services of material

dissemination, technical assistance and training, and awareness to its target populations of people with

disabilities, disability organizations, policy makers, public rehabilitation providers, employers, businesses, state and local governments, educators, design professionals, legal professionals, and the

media. In addition, the Center includes a research model that can measure changes in employment,

commerce, and community in terms of accessibility, receptivity, and active participation. Research

conducted by the Washington University School of Medicine focuses on community participation and

employment. The University of Kansas continually reviews emerging literature and research findings

to improve core services and research activities. Paraquad, a Center for Independent Living, facilitates

input from consumers at all stages of service provision and research, and represents the perspective of

the intended beneficiaries of the project, people with disabilities. Additional quality assurance of the

research and core services is provided by an Advisory Committee representing all parts of the region

and professional disciplines involved in this project. Great Plains DBTAC is the lead sponsor of the

ADA Symposium, THE Annual National ADA Training in St. Louis (www.adasymposium.org).
NIDRR Program Directory FY 2009 - ADA Technical Assistance Programs 7-11

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VIII - CO, MT, ND, SD, UT, and WY

DBTAC Rocky Mountain ADA Center — Region VIII

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

rmdbtac@mtc-inc.com

www.adainformation.org

Principal Investigator: Jana Copeland, PhD, Project Director 719/444-0268

Public Contact: 800/949-4232 (V/TTY, in CO, MT, ND, SD, UT, and WY); 719/444-0268 (V/

TTY); Fax: 719/444-0269

Project Number: H133A060079

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,105,000; FY 07 $1,105,000; FY 08 $1,105,000; FY 09 $1,105,000

Abstract: This mission of the DBTAC Rocky Mountain ADA Center is to provide individuals and

organizations in Colorado, Montana, North Dakota, South Dakota, Utah, and Wyoming with information on the ADA. Meeting the Challenge (MTC) has developed a program of technical assistance

based on the concept of mass customization to address the specific needs of target groups across the

region. Training activities take advantage of technology and new theories of training to ensure maximum impact. Dissemination provides tailored materials that provide actionable information for the

specific needs of target groups. The capacity of this DBTAC is expanded through an ADA Leadership

Network of 30-35 experts from across the region. To inform the technical assistance delivered by the

DBTAC and to produce evidence-based reports on ADA implementation, MTC has allocated 15

percent of the DBTAC project budget to a coherent, sustained research agenda. Research is conducted

by a team of research organizations from across the region, including Dr. Martin Blair at the Utah State

University Center for People with Disabilities, Dr. Kathy Laurin at the University of Montana Rural

Institute, and Patricia Yeager, a doctoral candidate at the University of Northern Colorado. The team is

engaged in an initial program of research that has been coordinated through the DBTAC Coordination

and Outreach Center. The focus of the project’s ADA research agenda is improving employment

outcomes for people with disabilities. The results of the DBTAC research program are used to inform

technical assistance efforts by assessing the efficacy of the DBTAC’s core functions and translating

new research results into the technical assistance process. The DBTAC program includes an extensive

plan of evaluation based on reviewing operational activities monthly and performance metrics quarterly

and annually. The output and outcome evaluation is based on the DBTAC logic model developed by

MTC over the past several years.
7-12 NIDRR Program Directory FY 2009 - ADA Technical Assistance Programs

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region IX - AZ, CA, HI, NV, and the Pacific Basin

Disability and Business Technical Assistance Center (DBTAC) —

Pacific ADA Center

Public Health Institute

555 12th Street; Suite 130;

Oakland, CA 94607-4046

adatech@adapacific.com

www.adapacific.org

Principal Investigator: Erica C. Jones, Project Director 510/285-5600 (V/TTY)

Public Contact: 800/949-4232 (V/TTY, in AZ, CA, HI, NV, and the Pacific Basin); 510/285-5600

(V/TTY); Fax: 510/285-5614

Project Number: H133A060098

Start Date: October 01, 2006

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 06 $1,105,000; FY 07 $1,105,000; FY 08 $1,105,000; FY 09 $1,105,000

Abstract: The Pacific DBTAC provides technical assistance, training, and information dissemination

for Arizona, California, Hawaii, Nevada, and the Pacific Basin. The program places a special emphasis on increasing employment, reasonable accommodation, and retention of persons with disabilities -

particularly through outreach to high growth industries - and on enhancing participatory/community

living opportunities for persons with disabilities. In addition to enhancements in established training,

dissemination, and technical assistance services, the program includes a research program designed to

enhance compliance with ADA rules and regulations, expand employment and community living for

persons with disabilities, and make significant contributions to the literature in the field. The research

program includes two randomized, controlled trials operated by the Center in collaboration with the

DBTAC Coordination, Outreach, and Research Center; a collaborative research initiative led by

Cornell University that includes a partnership with three additional DBTACs and the Society for

Human Resource Management (SHRM); and two five-year special initiatives operated in conjunction

with the Center’s training and technical assistance programs - one to test the effectiveness of selected

online disability-related training modules and the other to develop innovative outreach and training

approaches directed toward the hospitality industry.
NIDRR Program Directory FY 2009 - ADA Technical Assistance Programs 7-13

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region X - AK, ID, OR, and WA

Disability and Business Technical Assistance Center (DBTAC) —

Northwest

University of Washington

The Center for Continuing Education in Rehabilitation

6912 220th Street SW, Suite 105

Mountlake Terrace, WA 98043

dbtacnw@u.washington.edu

www.dbtacnorthwest.org/

Principal Investigator: Kathe Matrone, PhD 425/771-7436

Public Contact: 800/949-4232 (V/TTY, AK, ID, OR, and WA); 425/248-2480 (V); Fax: 425/774-

9303

Project Number: H133A070048

Start Date: August 01, 2007

Length: 48 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 07 $467,600; FY 08 $1,105,000; FY 09 $1,105,000

Abstract: The Northwest DBTAC provides information, training, and technical assistance on the

ADA to educational organizations, employers, advocacy organizations, state and local governments,

disability service organizations, parents, and individuals with disabilities in Alaska, Idaho, Oregon, and

Washington. Core services include: technical assistance provided by phone, Internet, email, and in

person; information dissemination in electronic and print formats, including a comprehensive website,

quarterly newsletter, etc.; education and training on various aspects of the ADA using a variety of

modalities, including teleconferences, web-based multimedia events, and face-to-face; and targeted

research on interventions and strategies of problematic areas identified through outreach activities, such

as barriers to employment and enhancing employment outcomes.

Contents

Rehabilitation Research and Training Centers (RRTCs) ....................................................................... 3

Disability and Rehabilitation Research Projects .................................................................................... 5

Fellowships (Distinguished) ................................................................................................................ 12

Fellowships (Merit) ............................................................................................................................. 14

Advanced Rehabilitation Research Training Projects.......................................................................... 22

Capacity Building for Rehabilitation Research and Training

In the arena of capacity building, NIDRR has focused its efforts on the personal and

professional development of scientists, advocates, and people with disabilities, and is

expanding this approach to include development of the capacity of institutions and

organizations, especially those that address the needs of underserved populations. At

the individual level, NIDRR focuses on capacity building to ensure a source of

researchers to carry out the research agenda. In addition, NIDRR capacity building at

this level enhances the ability of researchers to generate useful new knowledge.

NIDRR historically has sought to increase the number of individuals from

underrepresented groups in this effort, particularly those with disabilities. At the

organizational or systems level, NIDRR capacity building supports the framework

for carrying out individual level research work. At the systems level, all NIDRR

programs may be said to involve capacity building, in that NIDRR funding is

intended to increase the capacity of the field to conduct high quality research

directed at its long-term goals and objectives.

NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

University of Illinois at Chicago National Research and Training

Center on Psychiatric Disability

University of Illinois at Chicago

Center on Mental Health Services Research and Policy

1601 West Taylor Street, 4th Floor, M/C 912

Chicago, IL 60612

jonikas@psych.uic.edu

www.psych.uic.edu/uicnrtc

Principal Investigator: Judith A. Cook, PhD 312/355-3921

Public Contact: Jessica A. Jonikas 312/355-1696 (V); 312/422-0706 (TTY); Fax: 312/355-4189

Project Number: H133B050003

Start Date: October 01, 2005

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 05 $500,000; FY 06 $500,000; FY 07 $500,000; FY 08 $1,300,000; FY 09

$500,000

Other Funding: FY 05 $800,000 Centers for Mental Health Services (CMHS); FY 06 $800,000

CMHS; FY 07 $800,000 CMHS; FY 08 $800,000 CMHS; FY 09 $800,000 CMHS

Abstract: The University of Illinois at Chicago National Research and Training Center on Psychiatric

Disability (UIC-NRTC) promotes access to effective consumer-centered and community-based practices for adults with serious mental illness. The Center is conducting five rigorous research projects to

enhance the state of evidence-based practice (EBP) in this field: A randomized controlled trial (RCT)

study of Wellness Recovery Action Planning (WRAP) to gather evidence regarding its effectiveness;

an RCT to evaluate the effectiveness of BRIDGES, a 10-week peer-led education course designed to

provide mental health consumers with basic education about the etiology and treatment of mental

illness, self-help skills, and recovery principles; an RCT of peer support services delivered by

Georgia’s Certified Peer Specialists at consumer-run Peer Support Centers in order to determine the

outcomes of service recipients; a self-directed care program in which adults with serious mental illnesses are given control of financial resources to self-direct their own recovery; and a project using

data from 12 clinical trials studies of consumer-operated service programs to create a national data

repository to promote research and develop scholarship in this area. The Center also conducts state of

the art training, dissemination, and technical assistance projects designed to enhance the leadership

skills of people with psychiatric disabilities, and evaluate a self-advocacy skills training program

delivered to clients of a large psychosocial rehabilitation agency. Additional projects evaluate selfadvocacy skills training programs and implement training programs to prepare consumer leaders in the

State of California to take part in systems change in their local communities. UIC-NRTC is embarking

on an academic curriculum transformation project starting at UIC in the medical, social, and behavioral

sciences to incorporate principles of recovery and EBP for people with psychiatric disabilities. The

UIC-NRTC is designing and administering a no-cost online certification program, providing compre-
8-4 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

hensive introduction of knowledge required by peer providers. Additionally, the UIC-NRTC is providing training and developing projects and tools to assist individuals in recovery to gain the skills necessary for community integration by enhancing the research capacity of three federally-funded consumerrun Technical Assistance Centers. Finally, the UIC-NRTC is offering an annual series of online

workshops; web-based continuing education courses; and a state-of-science national conference (2008)

focusing on EBP, research implementation, consumer-centered systems, workforce development, and

other emerging trends.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-5

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Center for Strategic Capacity Building on Minorities with Disabilities

Research

University of Illinois at Chicago

Department of Disability and Human Development (M/C 626)

1640 West Roosevelt Road

Chicago, IL 60608

www.disabilityempowerment.org/

Principal Investigator: Fabricio E. Balcazar, PhD 312/413-1646

Public Contact: 312/413-1806 (V); 312/413-0453 (TTY); Fax: 312/413-1804

Project Number: H133A040007

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $600,000; FY 05 $600,000; FY 06 $600,000; FY 07 $600,000; FY 08

$600,000; FY 09 (No-cost extension through 10/31/2010)

Abstract: The Center for Capacity Building on Minorities with Disabilities Research (CBMDR)

increases the capacity of community-based organizations (CBOs like Centers for Independent Living

and other agencies) and State Vocational Rehabilitation (VR) Agencies to document the impact of their

programs and develop culturally competent services. The CBMDR utilizes participatory research

methodologies to promote organizational change. The Center’s mission is to promote positive rehabilitation outcomes for minority individuals with disabilities at the national level. Center staff conducts

participatory research and demonstration projects in collaboration with interested agencies, engages in

active dissemination efforts, and provides state-of-the art training and technical assistance on cultural

competence to professionals and researchers in the field. Presently, there is a limited understanding of

the relationship between minority and disability status and how it affects an individual’s access to

quality rehabilitation, technical training, or independent living services that will result in competitive

employment and increased independence. In addition, CBOs are under increased pressure from

funders to use research methods to improve the quality of the services they provide. The Center utilizes

a participatory program evaluation model which actively involves consumers and agency staff in the

process of identifying service needs, selecting program goals, developing a logic model for success,

and implementing and evaluating change efforts to address critical needs and improve services. From

this perspective, participating agencies develop their capacity for effectively using consumer input and

program data to identify research questions and methods to improve services. In addition, research

projects examine various aspects of theory, methodology, measurement, and dissemination of information involving the study of underrepresented minorities with disabilities. Specifically, the project studies

issues related to racial identity and cultural mistrust in service provision to minority populations;

reviews the cultural and linguistic appropriateness of commonly used evaluation instruments in VR

certification; develops standards for culturally competent and linguistically appropriate research and

services; and identifies preferred strategies for the dissemination of research findings and other relevant
8-6 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

information to researchers and service providers. Center staff is also invested in promoting cultural

competence among researchers and practitioners from around the country. The research initiatives

include both quantitative and qualitative methodologies. Partnerships with universities, state VR

agencies, and CBOs maximize the outreach efforts and long-lasting effect of the center. The Center

develops specific techniques for ensuring that the information is disseminated in accessible formats to

all stakeholders.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-7

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Louisiana

Rehabilitation Research Institute for Underrepresented Populations

(RRIUP)

Southern University A&M College

Department of Rehabilitation and Disability Studies

229 Blanks Hall

Baton Rouge, LA 70813

kundusubr@aol.com; alodutta1992@aol.com

www.subr.edu/science/rehabcounsel/RRIUP/index.htm

Principal Investigator: Alo Dutta, PhD

Public Contact: Madan Kundu, PhD 225/771-2819; 225/771-0047; Fax: 225/771-2293

Project Number: H133A031705

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $350,000; FY 04 $350,000; FY 05 $350,000; FY 06 $350,000; FY 07

$350,000; FY 08 (No-cost extension through 11/30/2009)

Abstract: The goals of this project are to improve the quality and utility of research related to individuals with disabilities from traditionally underserved racial/ethnic population, to enhance knowledge and

awareness of issues related to these populations, to help maximize the full inclusion and integration of

individuals with disabilities into society, and to improve the effectiveness of services authorized under

the Rehabilitation Act. The objectives of this project are: (1) to expand the existing and proven work

alliance of three minority and two non-minority entities, e.g., Southern University, East Carolina

University, Crownpoint Institute of Technology, University of Memphis, and Independent Living

Research Utilization respectively, for strengthening the disability-related multicultural research framework and improving long-term rehabilitation outcomes of culturally diverse groups; (2) to investigate,

evaluate, and modify five measures to assess the capacity and competence of the disability and vocational rehabilitation workforce to provide quality services to individuals with disabilities from traditionally underserved racial and ethnic populations; (3) to investigate and develop culturally appropriate

research capacity and infrastructure building techniques to ensure the optimal participation of minority

entities and American Indian tribes in disability and rehabilitation research; and (4) to develop and

evaluate outreach, recruitment, training, reinforcement, retention, and dissemination strategies to

enhance participation of students and investigators from traditionally underserved populations as

rehabilitation researchers, administrators, and educators.
8-8 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Hampshire

Building Knowledge and Capacity in the Rehabilitation and Recovery

of African-Americans Suffering from Severe Mental Illness: The

Dartmouth-Howard Collaboration.

Dartmouth College

Dartmouth Psychiatric Research Center

2 Whipple Place, Suite 202

Lebanon, NH 03766

Principal Investigator: Rob Whitley, PhD; William Lawson, MD, PhD

Public Contact: 603/448-0263 (Whitley); 202/865-6611 (Lawson); Fax: 603/448-3976

Project Number: H133A080063

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 08 $354,345; FY 09 $355,566

Abstract: The goal of the three projects conducted by this center is to understand the broad service

experience of African-Americans in psychiatric rehabilitation. The first project assesses the influence

on rehabilitation of living in independent housing units in small, relationship-centered buildings that

accommodate other people in recovery from mental illness. Seven of these small communities, each

with approximately 120 apartments, are the focus of this project. These are located in and around

Washington DC, and are studied longitudinally for three years using focus groups, interviews, and

ethnography to assess influence of living in such a building on recovery and community integration.

The second project examines the process of rehabilitation for African-Americans with a co-occurring

severe mental illness and substance use disorder. Participants are those whose primary substance use is

illegal drugs, and who are receiving either (1) dual diagnosis case management; (2) case management

plus group therapy; or (3) case management plus contingency management. Participants are followed

quantitatively and qualitatively over 18 months to assess how African Americans respond to these

treatments, as well as their subjective perception of treatment delivery and impact. The final project is a

study of the service experience of African-Americans in supported employment. Participants in six

different supported employment programs are assessed quantitatively, for drop-outs, engagement, and

missed appointments, and qualitatively through interviews and participant observation to understand

the dynamics of the patient-provider interaction. The aim of this research is to assess the cultural

competence of such programs, with an eye to building improved models tailored to African-Americans. This research involves a collaboration between Dartmouth Psychiatric Research Center and

Howard University College of Medicine, Department of Psychiatry.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-9

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

South Carolina

Center on Health Outcomes Research and Capacity Building for

Underserved Populations with SCI and TBI

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

77 President Street, Suite 117

PO Box 250700

Charleston, SC 29425

cokerj@musc.edu

www.musc.edu/chp/sciorg/ www.sciandtbiresearch.blogspot.com/

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-7051; Fax: 843/792-5649

Project Number: H133A080064

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 08 $353,133; FY 09 $353,134

Abstract: This project builds the capacity of institutions that address the needs of underserved populations by: (a) conducting two innovative studies to generate new knowledge on the health of three

underserved racial-ethnic groups with traumatic neurologic injuries; (b) providing capacity building

through collaboration with South Carolina State University, a historic Black university, specialized

instruction of undergraduate and graduate students, and widespread training to institutions and organizations that represent underserved populations; and (c) providing technical assistance to a wide array of

target audiences to enhance the capacity to meet the needs of underserved populations. In Study 1,

researchers interview 500 African-Americans from population-based surveillance systems with spinal

cord injuries (SCI) or traumatic brain injuries (TBI) and compare their health behaviors, access to

services, and the prevalence of chronic diseases with African-Americans in the general population

(based on CDC surveillance). Researchers then identify the extent to which disparities observed in the

general population are magnified after injury. Study 2 involves interviews with 836 participants with

SCI, 575 of whom come from underserved populations (African-Americans, Hispanics, and American

Indians) in order to identify psychological, environmental, and behavioral predictors of secondary

health conditions. Mediational models are tested to identify the risk and protective factors most strongly

associated with disparities in health outcomes (e.g., pain, depression, pressure ulcers) and the extent to

which disparities disappear when accounting for these factors. Researchers also determine whether the

predictive model is invariant across race-ethnicity (i.e., whether the significant predictors are the same

across different racial-ethnic groups) and, if not, which predictors are most important for each. Capacity building efforts include workshops, mentorship of undergraduate and graduate students, and technical assistance.
8-10 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Minority Scholar/Champion Research Training Project

Texas Southern University

3100 Cleburne Avenue

Houston, TX 77004

www.tsu.edu/academics/continue/research/index.asp

Principal Investigator: Irvine E. Epps, EdD 713/313-7224

Public Contact: Marie A. Henry 713/313-7225; Fax: 713/313-7579

Project Number: H133A031704

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $350,000; FY 04 $349,655; FY 05 $349,889; FY 06 $348,986; FY 07

$349,222; FY 08 (No-cost extension through 11/30/2009)

Abstract: The Minority Scholars/Champions Research Training Project develops, implements, and

evaluates the effectiveness of a train-the-trainer “Scholar/Champion” model to facilitate increased and

improved vocational rehabilitation (VR)/disability research among the targeted Historically Black

Colleges and Universities (HBCUs). More specifically, the project develops an innovative research

infrastructure of institutional “cores” that partner an HBCU, Texas Southern University (TSU), with a

majority research institution, Baylor College of Medicine (BCM). Together, these partner institutions

create a collaborative research infrastructure that increases research capacity and helps build an institutional research infrastructure at five additional HBCUs in Texas. These “cores” are: (1) the Administrative, Planning, and Evaluation Core directs the Center, selects Center participants, and supervises

evaluation of all project activities, budgets, and reports; (2) the Training Core uses innovative methods

of onsite and off-site training to recruit, support, and mentor minority investigators in the areas of

research design, development, and implementation, including analysis of racial and cultural factors

related to VR/disability research; (3) the Community Collaboration and Dissemination Core partners

with communities and VR/disability agencies to engage individuals with disabilities in research and

training, using a model of participatory action-oriented research, and disseminates culturally-sensitive

information related to VR/disability research to community groups, agencies, and VR/disability researchers; and (4) the Research Core works with the HBCU Scholar/Champions to conduct innovative

and rigorous pilot research projects as well as write fully developed research proposals that address

racial disparities in VR/disability research.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-11

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Virginia

Empowerment: Building Research Infrastructure Capacity

Virginia Commonwealth University

Department of Rehabilitation Counseling

730 East Broad Street, Room 3070

PO Box 980330

Richmond, VA 23298

anlewis@vcu.edu

Principal Investigator: Allen Lewis, PhD; Juan Carlos Arango-Lasprilla, PhD; Paul Wehman, PhD

Public Contact: 804/827-0914; Fax: 804/828-1321

Project Number: H133A080060

Start Date: October 01, 2008

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 08 $356,550; FY 09 $356,373

Abstract: This project identifies and evaluates current practice and methods in the conduct of minority

disability research, offers research findings, and improves the capacity of minority institutions and

persons with disabilities to effectively conduct and disseminate such research thereby advancing the

state of the art and capacity in this research area. The project conducts three primary studies: (1) a

national survey that examines the experiences of Americans with disabilities from underrepresented

racial and ethnic minority groups to illuminate the current capacity of the public rehabilitation and

disability system, and what research methods, dissemination practices, and strategies are needed to

advance culturally competent research in the field; (2) a longitudinal study of post-injury unemployment for minority persons with traumatic brain and spinal cord injuries; and (3) prevalence and trends

in employment discrimination due to disability for different ethnic groups. In addition to these three

studies, the project has seven objectives: (1) establish meaningful collaborations and partnerships with

historically black universities; (2) convene a major Think Tank Summit in Year 1 that becomes an

ongoing Minority Disability Research Consortium; (3) create and implement an ongoing interactive

web portal; (4) mentor interested minority students and faculty members; (5) infuse minority disability

research best practices into research courses; (6) teach grant writing and publishing skills; and (7)

conduct a State-of-the-Science Conference. The proceedings from such a conference and the results

from the three studies lead to a major project outcome of a Handbook on Minority Disability Research.

Other project outcomes include but are not limited to published papers from the three studies; a national network of individuals with disabilities and minorities from which the efficacy of research and

dissemination practices can be evaluated in an ongoing manner; a web database of exemplary research

studies, and trained minority students and university faculty who can implement minority disability

research best practices identified by this effort and produce more research, including funded research

via NIDRR grants, in the future.
8-12 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Fellowships (Distinguished) Fellowships (Distinguished)

Maryland

Demographic Soup: Disentangling the Conceptual, Political, and

Methodological Dimensions of Disability Statistics

Barbara Altman

14608 Melinda Lane

Rockville, MD 20853

paul.altman@verizon.net

Principal Investigator: Barbara Altman

Public Contact: 301/460-5963

Project Number: H133F060011

Start Date: December 01, 2006

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 06 $75,000; FY 07 (No-cost extension through 11/30/2008); FY 08 (No-cost

extension through 11/30/2009)

Abstract: There are variances in disability research including how information is obtained and converted into useable data. This project brings together, in one document, the accumulation of knowledge

on measuring disability in survey and census contexts. Through the incorporation of several methodologies including historical review, analysis of political processes and decision-making, and complete

examination of the source, placement, and evaluation of disability measures currently in use, the book

manuscript contributes to the improvement of disability statistics, serving as a reference document to

understanding the data that exists. The book manuscript is divided into five sections: (1) examination

of the political and historical context, which includes chapters on the history of disability measurement;

(2) examination of the conceptualization and definition of disability, including chapters on the political

definitions for programmatic purposes and theoretical definitions; (3) examination of the science,

purpose, and relationship between the components of measurement, and the specific problems with

measurement in relation to special populations (i.e. children); (4) reviews of sample analysis and the

use of data including sources of data, research questions, and special focus on measures used in special

areas of research (i.e. aging and employment); and (5) exploration of international measurement of

disability and the role of the US in its development. Conclusions include recommendations for improving and standardizing the measurement and data collection process.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-13

Fellowships (Distinguished) Fellowships (Distinguished)

Pennsylvania

Cross-Disability Study of CRS

Yin Ling Irene Wong, PhD

3701 Locust Walk

Philadelphia, PA 19104

ylwong@sp2.upenn.edu

Principal Investigator: Yin Ling Irene Wong, PhD

Public Contact: 215/898-5505; Fax: 215/573-2099

Project Number: H133F090035

Start Date: September 01, 2009

Length: 12 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 09 $75,000

Abstract: Supporting people with disabilities in integrated housing is a major goal of rehabilitation

policy in the United States; therefore, it is important to identify factors that shape community residential

services (CRS). This project uses a comparative case study design involving both quantitative and

qualitative research approaches. Geographic information systems methodology is applied to assess

various facets of the spatial contexts of people with psychiatric disabilities (PD) and intellectual or

developmental disabilities ID/DD receiving CRS in eight counties from four states examining the

extent to which the two populations are living in integrated housing, as well as the conditions of their

neighborhoods. Semi-structured phone interviews with 12 representatives from 3 stakeholder groups in

2 states are conducted to generate an in-depth understanding of factors that contribute to the spatial

patterns of CRS for people with PD and ID/DD. The stakeholder groups include consumer advocacy

groups, service providers, and program planners/policy makers. Additionally, the project engages in a

participatory action research approach by collaborating with key stakeholders at every stage of the

research process. This research facilitates capacity building and improves operation of communitybased service delivery systems.
8-14 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Fellowships (Merit) Fellowships (Merit)

Illinois

Virtual Reality-Based Assessment Tool for Spatial Neglect Following

Stroke

Assaf Y. Dvorkin, PhD

345 East Superior Street, Suite 1406

Chicago, IL 60611

a-dvorkin@northwestern.edu

Principal Investigator: Assaf Y. Dvorkin, PhD

Public Contact: 312/238-5828; Fax: 312/238-2208

Project Number: H133F080010

Start Date: July 01, 2008

Length: 12 months

NIDRR Officer: A. Cate Miller, PhD

NIDRR Funding: FY 08 $65,000; FY 09 (No-cost extension through 12/31/2009)

Abstract: This project investigates the possibilities of robotics and virtual reality technology in spatial

neglect following stroke. A haptic/graphic virtual reality system (VRROOM) is developed and used in

assessing and quantifying perceptual performance and overall movement quality. The data provides

therapists and physicians with a more precise quantitative description of a patient’s sensory and motor

deficits in different spatial dimensions and provides a rational basis for improving current neuropsychological assessment measures.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-15

Fellowships (Merit) Fellowships (Merit)

Illinois

The Effectiveness of Intelligent-Stretching Followed by Active

Movement in Children with Cerebral Palsy

Yi-Ning Wu, PhD

345 East Superior Street, Room 1406

Chicago, IL 60611

Principal Investigator: Yi-Ning Wu, PhD

Public Contact: 312/238-4296

Project Number: H133F090042

Start Date: September 01, 2009

Length: 12 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 09 $65,000

Abstract: This project establishes an effective treatment protocol by using a robotic-assisted device

and biofeedback computer game-play to enhance walking ability, community participation, and the

quality of life of children with cerebral palsy (CP). The Portable Intelligent Ankle Stretcher (PIAS), a

state-of-the-art robotic technology, is combined with computer game-play for children with CP. A

therapeutic rationale is incorporated into the robotic-assisted device and the biofeedback task-oriented

computer game-play, thus increasing joint functional range of motion (ROM) and motor control over

six weeks of intervention. First, the PIAS strenuously stretches the spastic/deformed ankle using

intelligent control which moves the joint to extreme positions until a pre-specified peak resistance

torque is reached and holds for a preset period; stretching velocity is controlled to be inversely proportional to the resistance torque at the joint (slow down at the ROM limits for patient safety and speed up

in the middle ROM for efficient movement, and also avoid increasing spasticity). Second, after passive

intelligent stretching, the participant actively moves the footplate of the PIAS with his/her ankle within

a functional, participatory context by playing a computer game with assistance or resistance from the

PIAS. Finally, the gentle, passive “intelligent” stretching is applied on the ankle for cooling down.

Evaluation of the treatment effect on motor learning, biomechanical measurements, motor performance

evaluation, gait analysis, and functional evaluation is conducted before, during, and after the treatment

program. This treatment protocol facilitates the motor control of the ankle, improving functional

mobility (i.e. walking). Additionally, the program provides children with CP with an effective and

convenient treatment option to maintain ambulatory function into adolescence and adulthood.
8-16 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Fellowships (Merit) Fellowships (Merit)

Illinois

Does the Non-Lesioned Hemisphere Influence Paretic Lower Limb

Motor Function Following Stroke?

Sangeetha Madhavan, PhD

345 East Superior Street, Suite 1408

Chicago, IL 60613

Principal Investigator: Sangeetha Madhavan, PhD

Public Contact: 352/262-2569

Project Number: H133F090009

Start Date: October 01, 2009

Length: 12 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 09 $65,000

Abstract: This project explores the neurophysiological and behavioral consequences of ipsilateral

cortical activation relating to paretic leg movement within the target population of individuals with

subcortical chronic stroke. A recently developed transcranial magnetic stimulation (TMS) technique

and magnetic resonance diffusion tensor imaging (DTI) are used to assess ipsilateral corticomotor

connectivity from lower limb motor cortex to paretic limb spinal motoneurons. Further study of brain

stimulation techniques, such as repetitive TMS and direct current stimulation, may render the cortex

more susceptible to motor therapy. Project results lead to the effective application of non-invasive brain

stimulation techniques to the appropriate hemisphere and to the individualization of rehabilitation

strategies to maximize the effect of gait training, with the long-term goal of significantly increasing the

number of independent community walkers among stroke survivors.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-17

Fellowships (Merit) Fellowships (Merit)

Illinois

Subject-Specific EMG Pattern Classification to Promote Hand

Rehabilitation in Stroke Survivors

Sang Wook Lee, PhD

345 East Superior Street, Room 1406

Chicago, IL 60611

sanglee2@northwestern.edu

Principal Investigator: Sang Wook Lee, PhD

Public Contact: 312/238-6822; Fax: 312/238-2208

Project Number: H133F090018

Start Date: October 01, 2009

Length: 12 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 09 $65,000

Abstract: This project develops a robust electromyography (EMG) pattern classification method from

the muscle activation patterns of stroke survivors performing functional manual tasks and incorporates

this technique into a rehabilitative training study. The EMG pattern classification method allows stroke

survivors to incorporate their volitional drive with performing functional tasks, which is assisted by

rehabilitative devices. Successful EMG pattern classification for stroke survivors considers the physiological characteristics that affect the muscle activation patterns of this population. Potential outcomes

include: (1) targeted electrode placement increases the classification accuracy due to the weak muscle

activities of stroke survivors; and (2) activation patterns of hand muscles (i.e., distal muscles) are

affected by the activities of the elbow and shoulder muscles (i.e., proximal muscles). The project tests

the rehabilitative benefit of a training protocol that incorporates the EMG classification method. The

EMG pattern classification method is incorporated with the Actuated Cable Orthosis Glove (ACOG)

system which provides external assistance for the finger extension, and the rehabilitation protocol is

tested with a selected group of stroke survivors, who benefit the most from the specific functional tasks

employed in the protocol.
8-18 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Fellowships (Merit) Fellowships (Merit)

Illinois

Client-Centered Practices in Spinal Cord Injury (SCI) Rehabilitation

Christina Papadimitriou, PhD

345 East Superior Street

Chicago, IL 60611

cpapadimit@ric.org

Principal Investigator: Christina Papadimitriou, PhD

Public Contact: 312/238-4856

Project Number: H133F090053

Start Date: December 01, 2009

Length: 12 months

NIDRR Officer: Pimjai Sudsawad, ScD

NIDRR Funding: FY 09 $65,000

Abstract: This project improves the clinical practice and research for inpatient spinal cord injury (SCI)

rehabilitation. Project objectives are to: (1) understand how client-centered concepts are put into

practice by physical and occupational therapists in inpatient SCI rehabilitation; (2) identify critical

barriers and facilitators to client-centered practice implementation in inpatient SCI rehabilitation: (a) for

therapists at the level of the therapeutic encounter; (b) for patients at the level of the therapeutic encounter; (c) for therapists at the level of institutional policy and support; and (d) for the patient at the

level of institutional policy and support; and (3) assess the use and appropriateness of the Canadian

Occupational Performance Measure as an existing tool for supporting client-centered practice in

inpatient SCI rehabilitation. The project employs a participatory action research framework an in-depth

ethnographic study of client-centered practice involving a combination of observations, interviews, and

focus groups. The project produces: (1) a web-based, updateable field guide (including a framework

for understanding client-centeredness, exemplars of best practices, and a practice-based glossary of

practice techniques); and (2) a series of institutional and policy level recommendations for better

supporting client centered practice in inpatient SCI care. Dissemination plans include two conference

presentations, three manuscripts, and two educational workshops or seminars.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-19

Fellowships (Merit) Fellowships (Merit)

Michigan

Psychometric Evaluation of the Family Quality of Life Survey for

Minority Families

Preethy Samuel, PhD

4809 Woodward Avenue

268 Leonard Simons Building

Detroit, MI 48202

preethy@wayne.edu

Principal Investigator: Preethy Samuel, PhD

Public Contact: 313/577-8562; Fax: 313/577-3770

Project Number: H133F080024

Start Date: September 01, 2008

Length: 12 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $65,000; FY 09 (No-cost extension through 12/31/2009)

Abstract: The long-term goal of the project is to evaluate the potential of empowerment family support projects in improving the family quality of life (FQOL) of underserved families using a culturallysensitive and rigorous outcome measure. Hence the project evaluates the psychometrics of the Family

Quality of Life Survey (FQOLS) for measuring the FQOL of low-income, inner city, minority families

raising children with developmental disabilities. There are four project goals: (1) to establish the

construct validity and reliability of the FQOLS by analyzing the factorial structure of each of the nine

familial domains; (2) to establish the test-retest reliability of the FQOLS; (3) to establish the convergent

validity of the FQOLS with the Beach Center FQOL Scale and the Family Community Integration

Survey; and (4) to analyze the factors influencing the FQOL of low-income minority families raising

children with disabilities.
8-20 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Fellowships (Merit) Fellowships (Merit)

Texas

Inpatient Rehabilitation Volume-Outcomes Relationship

James E. Graham, PhD

301 University Boulevard

Galveston, TX 77555-1137

jegraham@utmb.edu

Principal Investigator: James E. Graham, PhD

Public Contact: 409/747-1634; Fax: 409/747-1638

Project Number: H133F090030

Start Date: September 01, 2009

Length: 12 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 09 $65,000

Abstract: This project investigates the volume-outcomes relationship within the major impairment

categories in inpatient rehabilitation including persons with stroke, hip fracture, and lower extremity

joint replacement. Project goals include: (1) examining the range of impairment-specific facility volumes for the most common inpatient rehabilitation impairment categories and the degree to which these

volumes vary over time; (2) examining the relationships between impairment-specific facility volumes

and rehabilitation outcomes; and (3) exploring the threshold values within distributions of impairmentspecific volumes that optimally classify community discharge status following rehabilitation. Key

outcome areas include: (1) rehabilitation length of stay, (2) functional status at discharge, and (3)

discharge setting. Anticipated products include: (1) descriptive summaries of the ranges and yearly

fluctuations in facility caseloads for the three primary impairment categories in inpatient rehabilitation,

(2) assessments of the volume-outcomes relationship in rehabilitation, and (3) estimates on the utility of

impairment-specific volumes to accurately classify community discharge status.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-21

Fellowships (Merit) Fellowships (Merit)

Washington

Turning the Corner for Amputee Rehabilitation: Identifying the

Appropriate Torsional Stiffness to Maximize Biomechanical

Performance

Brian C. Glaister

1410 North 40th Street

Seattle, WA 98103

Principal Investigator: Brian C. Glaister

Public Contact: 414/807-7399

Project Number: H133F090050

Start Date: August 01, 2009

Length: 12 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 09 $65,000

Abstract: This project identifies a range of torsional stiffness values that maximize overall biomechanical performance in terms of shear loads and instability. This is achieved by: (1) Investigating the

effect of torsional stiffness on socket torques. The effect of torsional stiffness on socket loading (an

easily measurable variable related to shear loading) is investigated through motion capture studies of

lower limb amputees walking straight ahead and while navigating a 90-degree hallway corner while

wearing an experimental prosthesis that can vary torsional stiffness. Special instrumentation on the

prosthesis records socket torques. (2) Investigating the effect of torsional stiffness on stance stability in

amputees experiencing torsional perturbations. In this experiment, torsional perturbations are applied to

the trunk, and the center of mass and center of pressure are measured by a motion capture system and

two force plates, respectively. Divergences of the two trajectories are used as an indicator of instability.

In experimentation, subjects perform the trials under five stiffness values: rigid and four levels of

stiffness representing the range of stiffness values exhibited by the human ankle as reported in the

literature. The results of this work assist prosthetic manufacturers in developing transverse rotational

adaptations that provide better biomechanical performance for lower limb amputees.
8-22 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training Project in Rehabilitation

Services Research

Northwestern University

Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

www.ric.org/research/fellowships.php

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-2383

Project Number: H133P030002

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06 $150,000; FY 07

$150,000; FY 08 (No-cost extension through 06/30/2009); FY 09 (No-cost extension through 06/30/

2010)

Abstract: This project develops a five-year fellowship program in rehabilitation-related health services

research at Northwestern University’s Institute for Health Services Research and Policy Studies and

the Department of Physical Medicine and Rehabilitation. It uses available expertise and collaborators

to train postdoctoral fellows in rehabilitation health services research. Over two years the program

includes course work, a practicum, original research, and grant writing. Fellows new to health services

research have six core courses, as well as the two additional courses for all fellows. The first year

concentrates on beginning Masters in Public Health (MPH) courses. The second year includes intermediate MPH course work plus electives. Each fellow is expected to develop an individual research

project by the end of the first training year, a publishable article by the end of the first year, and two

articles by the end of the second year, in addition to submitting at least one grant application related to

the research activity.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-23

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Rehabilitation Science for Basic Scientists and Engineers: An Advanced

Training Program

Northwestern University

Rehabilitation Institute of Chicago

345 East Superior Street, Room 1406

Chicago, IL 60611-4496

r-millard@northwestern.edu

Principal Investigator: W. Zev Rymer, MD, PhD

Public Contact: Robin Millard 312/238-6051; Fax: 312/238-2208

Project Number: H133P040007

Start Date: May 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $149,625; FY 05 $149,922; FY 06 $149,570; FY 07 $149,910; FY 08

$149,558; FY 09 (No-cost extension through 4/30/2010)

Abstract: The goal of this program is to increase the number of PhD engineers and basic scientists

trained to perform research aimed at solving problems of people with disabilities. To meet this objective, the project trains postdoctoral scientists in three areas of special expertise: musculoskeletal biomechanics; neurorehabilitation; and prosthetics, orthotics, and biomaterials. Targeted technical training is

coordinated with intensive clinical instruction and experience. Postdoctoral trainees, including scientists and engineers from minority or disability groups, are recruited by regional and national advertising

and via the Internet. Many training faculty are based within the Rehabilitation Institute of Chicago,

providing access to active clinical rehabilitation programs, and interaction both with clinical faculty and

people with disabilities.
8-24 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Advanced Training in Translational and Transformational Research to

Improve Vocational Outcomes for Persons with Disabilities

University of Illinois at Chicago

Department of Occupational Therapy

1919 West Taylor Street, MC 811

Chicago, IL 60612

kielhfnr@uic.edu

Principal Investigator: Gary Kielhofner, PhD

Public Contact: 312/996-4973; Fax: 312/413-0256

Project Number: H133P060003

Start Date: September 01, 2006

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 06 $150,000; FY 07 $150,000; FY 08 $150,000; FY 09 $150,000

Abstract: This project provides an intensive, interdisciplinary postdoctoral training program that

actively engages scholars in research designed to improve employment for persons with disabilities.

This advanced training program focuses on sub-populations of people with disabilities who are likely

to encounter the greatest number of barriers to accessing employment and relevant vocational services.

Moreover, the training program emphasizes preparing scholars to conduct research that has real world

impact (i.e., guiding and changing services, programs, organizations, and policies that influence

employment of persons with disabilities). As such it emphasizes: (1) translational scholarship that uses

empirical knowledge to develop, refine, and test optimal services and environmental strategies to

support employment; and (2) transformational scholarship employing participatory methodologies that

involve stakeholders in the research process and directly improve services, programs, organizations,

and policies. The training is strongly informed by concepts from disability studies that highlight the

importance of relevant services that address the perspectives of persons with disabilities and that

address environmental barriers to employment. The postdoctoral training program recruits and enrolls

seven highly qualified postdoctoral trainees from a variety of disciplines. Particular efforts are made to

recruit postdoctoral trainees with disabilities as well as those from diverse backgrounds. Each trainee

completes an intensive two-year advanced training program designed to assure acquisition of key skills

critical to successful research careers. The training program includes: (1) didactic preparation, (2) close

mentoring by highly qualified researchers, (3) immersion in ongoing research, and (4) field placement

in carefully selected programs or organizations where employment of people with disabilities is being

addressed. Trainees undergo a structured and closely supervised training process with a range of

opportunities for didactic and experiential training and with common expected milestones. At the same

time, each trainee’s program is individually designed to assure that the trainee has access to the most

rigorous and relevant concepts and research methodologies for his/her chosen focus for studying

vocational needs, services, and outcomes. The project monitors and assures high quality training, and

supports trainees to develop capacity to enter productive research careers that directly improve services, programs, and policies and that remove barriers to the employment of people with disabilities.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-25

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training Project in Rehabilitation

Services Research

Northwestern University

Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

www.ric.org/research/fellowships.php

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-4572

Project Number: H133P080006

Start Date: July 01, 2008

Length: 60 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 08 $150,000; FY 09 $150,000

Abstract: This project provides training to seven post-doctoral fellows as part of the Institute-led

health services training program at Northwestern University. This well-functioning interdisciplinary

program involves a substantial number of health services research faculty who work closely with one

another to direct a rigorous and relevant interdisciplinary curriculum for training health services researchers. The program includes carefully matched mentors, didactic course work, original research,

grant writing, and scientific publishing over a two-year program. Seven fellows develop new skills to

enhance their previous training in order to pursue a research career in rehabilitation-related health

services research.
8-26 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Massachusetts

Post-Doctoral Fellowship in Rehabilitation Outcomes and Effective

Research

Boston University Medical Campus

School of Public Health

Health and Disability Research Institute

580 Harrison Avenue

Boston, MA 02118

rmonarch@bu.edu

www.bu.edu/cre/training

Principal Investigator: Alan M. Jette, PhD 617/638-1985

Public Contact: Roseanne Monarch 617/638-1992; Fax: 617/638-1992

Project Number: H133P050001

Start Date: September 01, 2005

Length: 60 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 05 $150,000; FY 06 $150,000; FY 07 $150,000; FY 08 $150,000; FY 09

$150,000

Abstract: The BU Post-Doctoral Fellowship Program in Outcomes Research provides an interdisciplinary training and mentorship experience. The target group is doctorally-prepared rehabilitation professionals. The major function is to help post-doctoral fellows develop and refine the skills they will need

to conduct high quality, independent, funded research on the outcomes and effectiveness of rehabilitation care. Innovative strategies include: Obtaining advanced knowledge in the four content areas of

responsible conduct of research, advanced research design, advanced statistical methods, and contemporary measurement methodology; conceptualizing and assuming a major role in writing scientific

articles; obtaining experience in developing and presenting scientific presentations; assuming a major

role in writing research grant applications; and developing the ability to contribute in a meaningful and

constructive fashion in planning and implementing scientific abstracts, grant applications, and scientific

manuscripts as part of a research team. The main outcome of the program is to contribute to the creation of a cadre of highly skilled researchers equipped to conduct research to improve rehabilitation

outcomes and evaluate existing and new rehabilitation interventions.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-27

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Massachusetts

Advanced Research Training Program in Psychiatric Rehabilitation

Boston University

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue West

Boston, MA 02215-1303

zlatka@bu.edu

www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD; E. Sally Rogers, ScD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133P070001

Start Date: September 01, 2007

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 07 $149,986; FY 08 $149,994; FY 09 $149,995

Abstract: This project conducts two consecutive cycles of 2.25 year postdoctoral fellowship in psychiatric rehabilitation research, offered to six fellows over the course of the project. The recruitment

efforts target consumers, with the expectation of selecting one or more consumers. In order to optimize

the training experience, three fellows are in residence during each cycle. While the fellowship is

designed to provide a broad-based intensive training in psychiatric rehabilitation research, the six

fellows develop a particular expertise in conducting recovery-oriented research given the current

research profile of the Center for Psychiatric Rehabilitation at Boston University. Through a variety of

training modalities, fellows acquire competencies in the following areas: psychiatric rehabilitation and

recovery framework; consumer advocacy and self-help; research design/methodology; statistics;

computer literacy; conduct of applied rehabilitation research; and grant and professional writing. The

goals of this project are to: recruit six individuals with doctoral-level clinical training who are committed to pursuing a career in psychiatric rehabilitation research; provide fellows with intensive state-ofthe-art didactic experience as well as exposure to collegial collaboration relevant to psychiatric rehabilitation research; provide fellows with a research practicum consisting of a mentored participation in an

ongoing project in psychiatric rehabilitation or recovery, development and implementation of an

original pilot study and preparation of a grant submission and publications relevant to each fellow’s

area of research interest; and evaluate the overall research training program, including recruitment,

didactic training, and research practicum.
8-28 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Michigan

The UMHS/AACIL Rehabilitation Research Training Program

University of Michigan

Department of Physical Medicine and Rehabilitation

Rehabilitation Psychology

325 East Eisenhower, Suite 100

Ann Arbor, MI 48108

dgtate@umich.edu

www.med.umich.edu/pmr/edu/arrt.htm

Principal Investigator: Denise G. Tate, PhD, ABPP, FACRM

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133P030004

Start Date: September 01, 2003

Length: 60 months

NIDRR Officer: Phillip Beatty, PhD

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000; FY 06 $150,000; FY 07

$150,000; FY 08 (No-cost extension through 08/31/2009); FY 09 (No-cost extension through 2/28/

2010)

Abstract: The University of Michigan Health System (UMHS), Department of Physical Medicine and

Rehabilitation, and the Ann Arbor Center for Independent Living (AACIL) with consulting faculty

from Michigan State University (MSU) and Wayne State University (WSU) have developed a training

program to train six PhD and ten MD fellows. Training opportunities include the existing research

programs funded at UMHS, the academic doctoral level rehabilitation counseling program at MSU, the

multidisciplinary rehabilitation program at WSU, and opportunities for research training at a community-based agency, the AACIL. Emphasizing the consumer-scientist-practitioner model, this

multidisciplinary research training program utilizes faculty and resources from 3 universities and from

the AACIL to train 16 new fellows. Fellows and resident trainees may select from a curriculum that

focuses on three content areas: (1) health rehabilitation outcomes; (2) independent living and community re-integration; and (3) social/environmental aspects of rehabilitation, including assistive technology.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-29

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Michigan

The UMHS/AACIL Rehabilitation Research Training Program

University of Michigan

Department of Physical Medicine and Rehabilitation

325 East Eisenhower, Suite 100

Ann Arbor, MI 48108

kmorefie@umich.edu

www.med.umich.edu/pmr/edu/arrt.htm

Principal Investigator: Denise G. Tate, PhD, ABPP, FACRM

Public Contact: Kay Morefield 734/763-5600; Fax: 734/936-7048

Project Number: H133P090008

Start Date: September 01, 2009

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 09 $149,999

Abstract: This training program aims to train a cadre of researchers to produce new knowledge that

will advance evidence-based practice and improve the lives of persons with disabilities. Training

opportunities include the existing research programs funded at University of Michigan Health System

(UMHS), the academic doctoral-level rehabilitation counseling program at Michigan State University

(MSU), the multidisciplinary rehabilitation program at Wayne State University (WSU), and opportunities for research training at a community-based agency, the Ann Arbor Center for Independent Living

(AACIL). Emphasizing the consumer-scientist-practitioner model, this multidisciplinary research

training program utilizes faculty and resources from 3 universities and from the AACIL to train 16 new

fellows. Training opportunities include participation in existing research programs funded by NIDRR,

NIH, and the CDC at the University of Michigan as well as opportunities for conducting research in

conjunction with our community partner, the AACIL. A variety of didactic and practical experiences

make up this research training program. These include participation in academic courses available at

the University of Michigan, research seminars, presentations and lectures at meetings and national

conferences, and an opportunity to work collaboratively on research projects being conducted at many

sites. Fellows and trainees may select from a focus on three content areas: (1) community participation,

including social and environmental factors effecting independent living; (2) health and function; and

(3) assistive technologies. Cross cutting themes covered in all content areas include health disparities

and community needs of underserved populations with disabilities, women’s health, and aging with

disability. Special efforts are made to recruit and train researchers from racial and ethnic minority

backgrounds as well as individuals with disabilities. Through this research training experience, fellows

and resident trainees acquire and enhance specific research skills; learn how to collaborate effectively

across important rehabilitation areas and disciplines; and demonstrate a capacity to apply the results of

research to the problems of persons with disabilities.

The objectives of this research training are: (1) to provide training to qualified individuals within a

multidisciplinary perspective to evaluate research quality and to produce excellence; (2) to orient

training toward advancement of science and addressing the needs of persons with disabilities through
8-30 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

development of evidence-based practice and community-based participatory research; (3) to prepare

researchers to conduct studies in new settings, including home, schools, and community-based organizations; (4) to foster research skills that will result in successful research proposals addressing issues

relevant to persons with disabilities; and (5) to promote productive partnerships and collaborations that

lead to successful careers in areas with a shortage of qualified researchers.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-31

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Missouri

Health Activity Rehabilitation Research Training Center (HARRTC)

University of Missouri/Columbia

Department of Physical Medicine and Rehabilitation

DC046.00

One Hospital Drive

Columbia, MO 65212

holtmeyerk@health.missouri.edu

harrtc.missouri.edu

Principal Investigator: Jerry C. Parker, PhD 573/884-0042

Public Contact: Kim Holtmeyer, Grant Administrator 573/884-1499; Fax: 573/884-4540; 573/884-

3020

Project Number: H133P050005

Start Date: September 01, 2005

Length: 60 months

NIDRR Officer: Scott Brown, PhD

NIDRR Funding: FY 05 $150,000; FY 06 $150,000; FY 07 $150,000; FY 08 $150,000; FY 09

$150,000

Abstract: The specific aim of the Health Activity Rehabilitation Research Training Center is to

prepare postdoctoral trainees with comprehensive, collaborative research skills requisite for a career in

independent rehabilitation research. A key outcome of this project is a sustainable, replicable training

model that enhances the flow of basic research findings to clinical settings, thereby enhancing rehabilitation strategies for individuals with disabilities. One-third of project fellows are selected from

underrepresented populations, including individuals with disabilities. Postdoctoral fellows study a

rigorous, two-year core curriculum in advanced scientific methodology, and engage in

multidisciplinary training experiences through: (1) collaborating agencies; (2) campus and community

settings; (3) research mentors (scientists) from Biomedical Sciences, Physiology and Pharmacology,

Nutrition Sciences, and Physical Therapy; and (4) rehabilitation clinician-mentors. The training program incorporates didactic, classroom, and hands-on laboratory training. By the conclusion of training,

postdoctoral fellows will have completed a supervised independent research project, prepared scientific

manuscripts, presented their research findings at national meetings, and submitted their capstone

project, an extramural grant application. This program offers fellows a dual model of mentorship: a

clinical mentor and a scientist research mentor. In addition, a graduate-thesis research model provides

fellows with first-hand research experience.
8-32 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New Jersey

Advanced Psychiatric Rehabilitation Research on Employment and

Community Integration

University of Medicine and Dentistry of New Jersey

School of Health Related Profession

1776 Raritan Road

Scotch Plains, NJ 07076-2997

kgill@umdnj.edu

Principal Investigator: Kenneth J. Gill, PhD

Public Contact: 908/889-2438

Project Number: H133P050006

Start Date: September 01, 2005

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 05 $149,999; FY 06 $149,999; FY 07 $150,000; FY 08 $150,000; FY 09

$150,000

Abstract: This project offers a postdoctoral research training program in the areas of community

integration, natural supports including “circles of support”, and rehabilitation readiness. Fellows

participate in a variety of mentoring and didactic experiences provided by research mentors from

UMDNJ and the University of Pennsylvania. Fellows have the opportunity to continue to develop

their own long-term research program while participating in the research activities of their mentor.

They regularly present at departmental colloquia, and national and state conferences. Fellows develop

grant proposals and prepare articles for publication in peer-reviewed journals. Both didactic and field

training in psychiatric rehabilitation research focus on scientific methodology including experimental,

quasi-experimental, and correlational and survey methods. Fellows participate in research in one of the

following research areas: (1) comparing alternative job retention strategies including circle of support

approach to a diversity of strategies; (2) the reliability and validity of rehabilitation readiness measures

and indicators including their relationship to employment outcomes; and (3) a variety of community

integration projects on the factors that influence community integration, public policy affecting the

community, interventions designed to promote community integration through case management, and

Internet-based self-help or supported education provided by peers. Partner institutions include the

University of Pennsylvania RRTC on Community Integration, UPenn School of Social Work, Indiana

University-Purdue University School of Psychology, Boston University Sargent College of Health &

Rehabilitation and the Veterans Affairs of New Jersey.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-33

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New Jersey

Advanced Rehabilitation Research Training Center on Neuromusculoskeletal Rehabilitation

University of Medicine and Dentistry of New Jersey/New Jersey Medical School (UMDNJ/NJMS)

and

Kessler Medical Rehabilitation Research and Education Center (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

Principal Investigator: Peter Barrance, PhD

Public Contact: 973/324-3550; Fax: 973/243-6984

Project Number: H133P070007

Start Date: September 01, 2007

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 07 $149,559; FY 08 $149,847; FY 09 $149,723

Abstract: This post-doctoral research interdisciplinary training program on neuro-musculoskeletal

rehabilitation provides postdoctoral research opportunities to qualified individuals interested in research, and academic careers related to rehabilitation research. Over the course of the program, nine

postdoctoral fellows plan, conduct, and disseminate research, and may choose to conduct research in

neuro-musculoskeletal rehabilitation. Each ARRT fellow conducts rehabilitation research for a twoyear term. Anticipated measurable outcomes include published research studies, presentations at

national scientific meetings, submission of grant proposals, completion of research related courses,

training in techniques of dissemination, and the development of interdisciplinary research networks. In

addition to participation in research activities, each fellow completes a series of core courses and

directed study on interdisciplinary research, HIPAA, and the ethics for the recruitment of human

subjects in rehabilitation research. The activities of each postdoctoral fellow are directed and monitored

by a fellowship mentor with a demonstrated ability to implement, conduct, and disseminate the results

of research investigations contributing to the advancement of rehabilitation science. Core faculty

involved in the program represent departments/divisions of physical therapy, occupational therapy,

rehabilitation science, biomedical engineering, biomechanics, computer science, and mechanicalaerospace engineering. The goal of this project is to provide young investigators a stimulating environment, with an atmosphere of enthusiasm tempered by rigorous methodology that instills the desire to

improve the everyday lives of persons with disabilities.
8-34 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New Jersey

Advanced Rehabilitation Research Training Center on Neurocognitive

Rehabilitation

University of Medicine and Dentistry

New Jersey Medical School

300 Executive Drive, Suite 10

West Orange, NJ 07052

nchiaravalloti@kesslerfoundation.net

www.kesslerfoundation.org

Principal Investigator: Nancy D. Chiaravalloti, PhD 973/530-3640

Public Contact: 973/530-3600; Fax: 973/736-7886

Project Number: H133P090009

Start Date: July 01, 2009

Length: 60 months

NIDRR Officer: Leslie J. Caplan, PhD

NIDRR Funding: FY 09 $149,689

Abstract: The ARRT on Neurocognitive Rehabilitation provides young scientists with the

multidisciplinary skills necessary to continue to advance the scientific knowledge of neurological

illness and injury, its impact on everyday life, vocational functioning and brain functioning and effective means of identifying new rehabilitation interventions. This is accomplished by providing multiple

training opportunities for scientists and clinicians in clinically-focused rehabilitation research. The

ARRT supports the training of post-doctoral fellows in neuropsychology, cognitive neuroscience,

outcomes, and clinical rehabilitation. The program provides advanced multidisciplinary rehabilitation

research and training opportunities for clinical researchers including: (1) clinically trained PhD specialists (e.g. neuropsychologists, rehabilitation psychologists), (2) MD specialists in physiatry or behavioral neurology, and (3) non-clinical cognitive neuroscientists with a commitment to conduct clinical

rehabilitation research. The training program is based on an individualized Research Training Plan

designed by the trainee in close collaboration with his/her mentors. Training activities: (1) are relevant

to the fellow’s strengths, weaknesses, and interests; (2) provide guidance, mentoring, and technical

knowledge; (3) develop fellows an independent researchers; and (4) lead to the publication of research

findings.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-35

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New York

Advanced Rehabilitation Research Training Program

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

One Gustave L. Levy Place, Box 1240

New York, NY 10029

teresa.ashman@mssm.edu

www.mssm.edu/tbinet

Principal Investigator: Theresa Ashman, PhD

Public Contact: 212/241-2549; Fax: 212/348-5901

Project Number: H133P050004

Start Date: September 01, 2005

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 05 $149,999; FY 06 $149,999; FY 07 $149,999; FY 08 $149,999; FY 09

$149,999

Abstract: This Advanced Rehabilitation Research Training Program increases research capacity by

training ten doctoral-level professionals interested in pursuing research careers in rehabilitation of

individuals with traumatic brain injury (TBI) and spinal cord injury (SCI). In addition to expanding

their research expertise, fellows their knowledge of participatory action research and quantitative and

qualitative research methods, and actively participate with an interdisciplinary team of rehabilitation

researchers. Fellows are taught approaches to performance management and methods of evidencebased practice review. Research capacity building of the fellows is facilitated via mentoring on independent research projects and clinical supervision in interdisciplinary research experiences. To ensure

sensitivity to issues germane to individuals with TBI and SCI, fellows spend a portion of their time

providing clinical interventions or participating in structured community experiences. Performance

measures are utilized to monitor progress of the program and its fellows, with oversight provided by an

executive committee and an advisory board. By completion of training, fellows are expected to have

completed a minimum of one independent research project, presented the results of their research to

professional and consumer groups, submitted their findings for publication in peer-reviewed journals,

and participated in writing extramural grant proposals.
8-36 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New York

Advanced Rehabilitation Research and Disability Policy Training

Center

Syracuse University

School of Education

259 Huntington Hall

Syracuse, NY 13244

jlbellin@syr.edu

Principal Investigator: James L. Bellini, PhD

Public Contact: 315/443-9655

Project Number: H133P070004

Start Date: August 01, 2007

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 07 $149,986; FY 08 $149,994; FY 09 $149,969

Abstract: This project provides advanced training in rehabilitation research outcomes and disability

policy research for seven trainees over the life of the project. The project offers an individualized

training program to accommodate the needs of various postdoctoral researchers and others with advanced degrees who hold leadership positions in rehabilitation research and related policy areas.

Participants can pursue one of two traineeships: full-time, two-year (four trainees) and full-time, oneyear (three trainees). The project offers a set of core training experiences, including: advanced rehabilitation research seminar; individual mentoring in research and grant proposal-writing; a practicum in

research ethics and human subjects protections; and a practicum in the peer-review process and editorial decision-making. Trainees also select advanced training in one of two strands: rehabilitation outcomes research and disability policy research. Each strand includes 9-15 credits of coursework in

advanced rehabilitation research or disability policy research (with a Certificate of Advanced Study in

Disability Studies) and an internship at a rehabilitation or disability policy research project. Trainee

capstone experiences include the preparation and submission of peer-reviewed articles, conference

papers, or grant proposals as well as the preparation of research training packages for dissemination

through the project.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-37

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Pennsylvania

Career Advancement for Engineers in the Science of Rehabilitation

(CAESOR)

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Sciences and Technology

4020 Forbes Tower

Pittsburgh, PA 15260

Principal Investigator: Dan Ding, PhD

Public Contact: 412/954-5278; Fax: 412/954-5340

Project Number: H133P090010

Start Date: October 01, 2009

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 09 $149,972

Abstract: The goal of the Career Advancement for Engineers in the Science of Rehabilitation

(CAESOR) program is to increase the number of rigorously trained, extramurally competitive, and

scientifically productive engineering researchers in the field of rehabilitation science and engineering.

To that end, CAESOR provides 2 years of advanced rehabilitation research training for 8-10 highly

qualified postdoctoral trainees from basic engineering disciplines who are committed to a career in

rehabilitation research. CAESOR utilizes a rehabilitation research team consisting of a focused cadre

of mentors with interdisciplinary expertise in engineering, clinical, and psychosocial disciplines to

provide the trainees with a balanced exposure to research, clinical, and academic approaches to rehabilitation and disability issues. The comprehensive training provides: (1) immersion in a mentored

rehabilitation research experience by matching postdoctoral trainees with highly successful research

mentors; (2) complementary didactics including core and individualized components that teach and

enhance the critical skills necessary for a successful research career (such as grant writing, ethics, and

issues in human subject research), and topics that are not usually covered in traditional engineering

curricula (such as medical and social aspects of disability, research methods, and statistical analysis);

(3) involvement in mentored clinical experience to gain clinical insights and better understanding of

clinical decision making process; and (4) participation in a community practicum to understand the real

user needs and contextual constraints of technology. The capstone experience for the postdoctoral

trainees is the submission of an extramural research proposal.
8-38 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Texas

Interdisciplinary Rehabilitation Research Training Program

University of Texas Medical Branch

301 University Boulevard

Galveston, TX 77555-1137

kottenba@utmb.edu

www.sahs.utmb.edu/rehab

Principal Investigator: Kenneth J. Ottenbacher, PhD

Public Contact: Beth Cammarn 409/747-1637; Fax: 409/747-1638

Project Number: H133P040003

Start Date: July 01, 2004

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $145,686; FY 05 $145,686; FY 06 $145,686; FY 07 $145,686; FY 08

$148,023; FY 09 (No-cost extension through 6/30/2010)

Abstract: This ARRT program provides postdoctoral research opportunities to qualified individuals

interested in clinical and academic careers related to rehabilitation research. Three postdoctoral fellows

must plan, conduct, and disseminate research in one of the following areas: cognitive/neurological

rehabilitation, applied physiology/biomechanics of rehabilitation, or geriatric rehabilitation. Each

rehabilitation research fellow selects one of the three research areas and conducts clinical investigations

for up to three years. Outcomes include published research studies, presentations at national scientific

meetings, submission of grant proposals, completion of research related courses, training in techniques

of dissemination, and the development of interdisciplinary research networks. In addition to participating in clinical research activities, each fellow completes a series of core courses and directed study

related to interdisciplinary research and the ethics associated with scientific inquiry and the use of

human subjects in rehabilitation research. All fellows participate in a practicum experience involving

persons with disabilities and their families/caregivers organized through the Transitional Learning

Center. The activities of each postdoctoral fellow are directed and monitored by a fellowship supervisor with a demonstrated ability to implement, conduct, and disseminate the results of research investigations contributing to the advancement of rehabilitation science.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-39

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Texas

Advanced Rehabilitation Research Training

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

One Baylor Plaza, Room 600d

Houston, TX 77030

Principal Investigator: Faye C. Tan, MD; Angelle Sander, PhD

Public Contact: 713/873-3875; Fax: 713/873-3874

Project Number: H133P080007

Start Date: July 01, 2008

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 08 $150,000; FY 09 $150,000

Abstract: The purpose of this program is to train post-doctoral fellows in the skills necessary to

become independent investigators in rehabilitation. Fellows must be competent in each major facet of

the research process—problem identification, analysis of the current state of knowledge, hypothesis

generation based on familiarity with applicable theory, research project design, mastery of relevant

techniques and instrumentation, statistical analysis, interpretation of findings, and preparation of

technical reports and publications. Through this program, fellows develop research expertise in one of

two potential training tracts: (1) traumatic brain injury/stroke or (2) spinal cord injury. For each track,

the International Classification of Functioning, Disability and Health (ICF) cell-to-society model has

been applied so that the fellow can select from any portion of the spectrum for his/her area of research

focus. Mentors for this program develop an individualized training plan for each fellow that includes

(a) participation in research projects of the primary and secondary mentors, (b) development and

implementation of an independent research project, and (c) required didactic course work drawn from

the Baylor College of Medicine Fundamentals of Clinical Investigation within the Clinical Scientist

Training Program (K-30) and the Department of Physical Medicine and Rehabilitation.
8-40 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Virginia

Advanced Research Training Program

Virginia Commonwealth University

Department of Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0542

www.npy.pmr.vcu.edu/arrt/overview.htm

Principal Investigator: Jeffrey S. Kreutzer, PhD 804/828-9055

Public Contact: Lee Livingston 804/828-3706; Fax: 804/828-2378

Project Number: H133P040006

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000; FY 07 $150,000; FY 08

$150,000; FY 09 (No-cost extension through 8/31/2010)

Abstract: This project is an advanced rehabilitation research training (ARRT) program for individuals

with advanced degrees who are committed to a career in rehabilitation research with a focus on

neurobehavioral recovery and intervention. Training and research activities address brain injury,

aneurysms, brain tumors, and other neurological disorders. Individualized research training plans

emphasizing scientific rigor guide fellows’ choices of training activities. Outstanding mentors, didactic

experiences, and collaborative and independent research activities provide the foundation for the VCU

ARRT program. Mentors include internationally and nationally renowned, distinguished scientists

from the fields of rehabilitation medicine, neuropsychology, psychiatry, neurosurgery, and vocational

rehabilitation. Core courses on ethics, conduct in scientific research, and grant writing are complemented by grand rounds and graduate courses. All fellows must complete and submit a grant application during the second year of their fellowship.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-41

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Virginia

Advanced Research Training Program in Neurobehavioral Recovery

and Intervention

Virginia Commonwealth University

Department of Physical Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0542

www.npy.pmr.vcu.edu/arrt/overview.htm

Principal Investigator: Jeffrey S. Kreutzer, PhD 804/828-9055

Public Contact: Juan Carlos Arango-Lasprilla, PhD 804/828-8797; Fax: 804/828-2378

Project Number: H133P090013

Start Date: September 01, 2009

Length: 60 months

NIDRR Officer: Kenneth D. Wood, PhD

NIDRR Funding: FY 09 $148,985

Abstract: This project is an advanced rehabilitation research training (ARRT) program for individuals

with advanced degrees who are committed to a career in rehabilitation research with a focus on

neurobehavioral recovery and intervention. Training and research activities address brain injury,

aneurysms, brain tumors, and other neurological disorders. Individualized research training plans

emphasizing scientific rigor guide fellows’ choices of training activities. Outstanding mentors, didactic

experiences, and collaborative and independent research activities provide the foundation for the VCU

ARRT program. Mentors include internationally and nationally renowned, distinguished scientists

from the fields of rehabilitation medicine, neuropsychology, psychiatry, neurosurgery, and vocational

rehabilitation. Core courses on ethics, conduct in scientific research, and grant writing are complemented by grand rounds and graduate courses. All fellows must complete and submit a grant application during the second year of their fellowship.
8-42 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Washington

University of Washington Advanced Rehabilitation Research Training

University of Washington

Department of Rehabilitation Medicine

1959 NE Pacific Street; Box 356490

Seattle, WA 98195-6490

Principal Investigator: Deborah Kartin, PT PhD; Kurt Johnson, PhD

Public Contact: TBA 206/598-5338; Fax: 206/685-3244

Project Number: H133P080008

Start Date: July 01, 2008

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 08 $149,491; FY 09 $149,411

Abstract: The primary goal of the UW-ARRT is to increase the number of successful, independent

rehabilitation researchers who not only understand their own area of focus, but also have a working

knowledge of other related Rehabilitation Science fields and have experience in interacting with

experts who are knowledgeable in these other areas. To that end, UW-ARRT provides advanced

rehabilitation research training for five to six highly qualified postdoctoral trainees to enable them to

become successful rehabilitation researchers, and to conduct formative and summative evaluation of

the training. UW-ARRT focuses on development of rehabilitation researchers with emphasis on design

and implementation of rehabilitation research, dissemination of research, and grant writing. The comprehensive training provides: (1) immersion in a mentored rehabilitation research experience by matching postdoctoral trainees with highly successful rehabilitation researchers and (2) complementary

didactics (Core and Individualized) to support trainees’ development as rehabilitation researchers. Core

Curriculum is built on an on-going bimonthly seminar specifically designed to: (1) teach and enhance

the critical skills necessary for a successful research career (a general research skills seminar to be held

once/month), and (2) provide for interaction among trainees interested in developing successful research careers in Rehabilitation Sciences and an interdisciplinary cohort of mentors/advisors who have

active and successful Rehabilitation Sciences research programs. The Individualized Didactic Curriculum allows a postdoctoral trainee to enroll, as needed, in additional coursework in research methods,

statistical analysis, and rehabilitation science.
NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training 8-43

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Wisconsin

Clinician Researchers and Engineers: Advanced Rehabilitation

Research Training

Marquette University

Orthopaedic and Rehabilitation Engineering Center

735 North 17th Street

P.O. Box 1881

Milwaukee, WI 53201

depps@mcw.edu

www.orec.org

Principal Investigator: Gerald F. Harris, PhD 414/288-0698

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133P040008

Start Date: September 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000; FY 06 $150,000; FY 07 $150,000; FY 08

$150,000; FY 09 (No-cost extension through 8/31/2010)

Abstract: This program provides advanced education and training in rehabilitation research to selected

engineers and clinician researchers. The overall goal is to develop expertise, enthusiasm, and productivity in rehabilitation research which results in an increase in the number of rehabilitation-trained

physicians and engineers. Fellows are trained to conduct independent, transdisciplinary research on

problems related to disability and rehabilitation. The specific goal is to produce productive career

researchers. The program is specifically designed to give the postdoctoral trainees the skills needed to

become independent rehabilitation researchers. The postdoctoral trainees experience a program designed to provide each candidate with a unique set of capabilities to succeed as a rehabilitation researcher. The capstone experience for the postdoctoral trainees is the submission of an extramural

research proposal. Three research areas have been selected that provide opportunities to participate in

advanced-level research: motion analysis, spasticity, and accessible medical instrumentation. Four

clinical areas give participants clinical experiences to link to their research experiences: spasticity

management, pain management, spinal cord injury, and motion analysis. As part of the professional

development of the postdoctoral trainees and to increase the exposure to rehabilitation research, crossdisciplinary teaching is encouraged. At the completion of the program, all trainees have completed a

directed independent research project, written and submitted scientific manuscripts, prepared a complete extramural grant proposal, and gained experience in managing a functional research team.
8-44 NIDRR Program Directory FY 2009 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Wisconsin

Advanced Rehabilitation Research Training in Pediatric Mobility

Marquette University

Orthopaedic and Rehabilitation Engineering Center

735 North 17th Street P.O. Box 1881

Milwaukee, WI 53201

depps@mcw.edu

www.orec.org

Principal Investigator: Gerald F. Harris, PhD 414/288-0698

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288- 0713

Project Number: H133P080005

Start Date: September 01, 2008

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 08 $150,000; FY 09 $150,000

Abstract: The goal of this project is to develop in-depth expertise, enthusiasm, and productivity in

rehabilitation research to increase the number of physicians and engineers qualified to conduct independent, transdisciplinary research on problems related to disability, rehabilitation, and pediatric

mobility. The program is specifically designed to give postdoctoral trainees the skills needed to become

productive, independent rehabilitation researchers. The research component of the training program

consists of 3 mentorship teams capable of providing a 20 - 25 percent support effort on a continued

basis. Qualified trainees are enrolled in the research training program for 24 to 36 months. Three

research areas (RAs) support opportunities for career oriented contributions to the field of pediatric

mobility. The RAs are Skeletal and Connective Tissue Biology, Assistive Devices, and Foot and

Ankle Mobility. Fellowship research requirements include pilot study completion and refinement,

multiple journal article submissions, and completion of extramural proposal(s). The capstone experience for the postdoctoral trainees is the completion of a sponsored workshop in their field of study with

nationally recognized leaders in attendance. A team of mentors with qualifications specific to each of

these RAs support candidates entering the program to enhance their current skills and offer additional,

high level training and experience.
Subject Index

No subject index was created for this version of the NIDRR Program Directory. The Directory remains in database format at www.naric.com/research/pd. This format is considerably more effective for

subject-oriented organization of the material in the Directory.

For assistance in searching the Program Directory database, contact the staff at NARIC at 800/346-

2742 or email jchaiken@heitechservices.com

Grantees

Grantees B-3

AbleLink Technologies, Inc. H133S090012 Colorado Springs, CO 3-59

AbleLink Technologies, Inc. H133S090027 Colorado Springs, CO 3-60

AbleLink Technologies, Inc. H133S080066 Colorado Springs, CO 3-72

Advanced Medical Electronics

Corporation H133S080068 Maple Grove, MN 3-76

Advanced Medical Electronics

Corporation H133S090130 Maple Grove, MN 3-77

Advanced Medical Electronics

Corporation H133S090069 Maple Grove, MN 3-67

Albert Einstein Healthcare Network H133G060086 Philadelphia, PA 2-87

Albert Einstein Healthcare Network H133G070143 Elkins Park, PA 2-84

Albert Einstein Healthcare Network H133G080066 Elkins Park ,PA 2-85

Albert Einstein Healthcare Network H133A070040 Elkins Park, PA 2-37

American Foundation for the Blind H133G090026 Huntington, WV 3-54

Aspen Systems, Inc. H133S090061 Marlborough, MA 3-66

Assaf Y. Dvorkin, PhD H133F080010 Chicago, IL 8-14

Assistech Systems, LLC H133S090138 Eugene, OR 4-42

Barbara Altman H133F060011 Rockville, MD 8-12

Baylor College of Medicine H133P080007 Houston, TX 8-39

Baylor College of Medicine H133G080042 Houston, TX 4-41

Boston University H133G090046 Boston, MA 4-26

Boston University H133B040026 Boston, MA 4-7

Boston University H133A050006 Boston, MA 6-4

Boston University H133G070140 Boston, MA 4-25

Boston University H133P070001 Boston, MA 8-27

Boston University H133G060071 Boston, MA 4-24

Boston University H133B090014 Boston, MA 1-5

Boston University Medical Campus H133P050001 Boston, MA 8-26

Boston University Medical Center H133N060024 Boston, MA 2-53

Brian C. Glaister H133F090050 Seattle, WA 8-21

Carnegie Mellon University H133E080019 Pittsburgh, PA 3-20

Carolinas HealthCare System H133A070042 Charlotte, NC 2-32

Carolinas Rehabilitation H133A080035 Charlotte, NC 2-33

Charmtech H133S090065 Cupertino, CA 3-57

Children’s Hospital Medical Center H133B090010 Cincinnati, OH 2-9

Children’s Hospital H133B060012 Boston, MA 4-8

Children’s Hospital Medical Center H133G050239 Cincinnati, OH 4-34

Children’s Hospital Medical Center H133G060167 Cincinnati, OH 4-35

Christina Papadimitriou, PhD H133F090053 Chicago, IL 8-18

Clarke School for the Deaf H133G060116 Northampton, MA 3-44

College of Health & Rehabilitation

Sciences: Sargent College H133G060180 Boston, MA 4-21

Cornell University H133A060088 Ithaca, NY 7-4

Cornell University H133B031111 Ithaca, NY 5-5

Cornell University H133B040013 Ithaca, NY 1-9

Craig Hospital H133N060005 Englewood, CO 2-49

Craig Hospital H133G090013 Englewood, CO 2-64
B-4 Grantees

Craig Hospital H133A060103 Englewood, CO 2-18

Craig Hospital H133A060038 Englewood, CO 2-19

Craig Hospital H133A070022 Englewood, CO 2-20

CreateAbility Concepts, Inc. H133S090099 Marion, IN 3-63

CreateAbility Concepts, Inc. H133S080075 Indianapolis, IN 3-75

Criterion Health, Inc. H133S090013 Terre Haute, IN 3-64

CUNY Research Foundation H133B080012 New York, NY 5-6

Dancing Dots Braille Music

Technology, L.P. H133S070089 Valley Forge, PA 3-82

Dartmouth College H133A080063 Lebanon, NH 8-8

Dartmouth College H133G090206 Hanover, NH 1-23

Dartmouth College H133G050230 Concord, NH 1-22

Drexel University H133G060254 Philadelphia, PA 2-86

Duke University H133A060062 Durham, NC 3-28

Duke University H133E030018 Durham, NC 3-16

Duke University H133E080011 Durham, NC 3-17

Feinberg School of Medicine H133B040032 Chicago, IL 5-3

Gallaudet University H133G060065 Washington, DC 3-33

Gallaudet University H133E080006 Washington, DC 3-6

Georgia Institute of Technology H133E080003 Atlanta, GA 3-9

Georgia Institute of Technology H133E060061 Atlanta, GA 3-7

Georgia Institute of Technology|

Center for Assistive Technology and

Environmental Access (CATEA)| H133E070026 Atlanta, GA 3-8

Georgia Institute of Technology|

Center for Assistive Technology

and Environmental Access (CATEA)| H133G070063 Atlanta, GA 3-36

HeiTech Services, Inc. ED-08-CO-0095 Landover, MD 6-11

Hunter College of CUNY H133B040014 New York, NY 1-11

Institute for Human Centered Design H133A060092 Boston, MA 7-3

James E. Graham, PhD H133F090030 Galveston, TX 8-20

JFK Johnson Rehabilitation Institute H133A031713 Edison, NJ 2-27

JFK Johnson Rehabilitation Institute H133A070030 Edison, NJ 2-28

Johns Hopkins School of Medicine H133A070045 Baltimore, MD 2-23

Kent State University H133G080158 Kent, OH 4-36

Kessler Foundation H133G080136 West Orange, NJ 3-46

Kessler Foundation H133G090078 West Orange, NJ 2-81

Kessler Foundation Research Center H133A070037 West Orange, NJ 2-29

Kessler Medical Rehabilitation

Research and Education

Corporation (KMRREC) H133G070138 West Orange, NJ 2-80

Kessler Medical Rehabilitation

Research and Education

Corporation (KMRREC) H133N060022 West Orange, NJ 2-55

Koronis Biomedical Technologies

Corporation H133S090055 Maple Grove, MN 3-68

Learnimation, LLC H133S090104 Brooklyn, NY 3-69
Grantees B-5

Life Technologies, LLC H133S080077 Eugene, OR 3-81

Life Technologies, LLC H133S070096 Eugene, OR 3-80

Louisiana State University H133A080069 Baton Rouge, LA 4-15

Madonna Rehabilitation Hospital H133G070209 Lincoln, NE 2-78

Marquette University H133P040008 Milwaukee, WI 8-43

Marquette University H133P080005 Milwaukee, WI 8-44

Marquette University H133G060252 Milwaukee, WI 2-96

Mayo Clinic H133A070013 Rochester, MN 2-26

Medical College of Wisconsin H133G060142 Milwaukee, WI 3-55

Medical College of Wisconsin H133G060155 Milwaukee, WI 3-56

Medical University of South Carolina H133G060126 Charleston, SC 2-89

Medical University of South Carolina H133A080064 Charleston, SC 8-9

Medical University of South Carolina H133G050165 Charleston, SC 2-88

Medical University of South Carolina H133G090059 Charleston, SC 2-91

Medical University of South Carolina H133B090005 Charleston, SC 2-11

MedStar Research Institute H133B090002 Washington, DC 2-6

Meeting the Challenge, Inc. H133A060079 Colorado Springs, CO 7-11

Memorial Herman|The Institute for

Rehabilitation and Research (TIRR) H133G070222 Houston, TX 2-92

MetroHealth System H133N060017 Cleveland, OH 2-57

Mississippi State University H133A070001 Mississippi State, MS 1-16

Motion Control, Inc. H133S070084 Salt Lake City, UT 3-83

Motion Control, Inc. H133S090131 Salt Lake City, UT 2-97

Motion Control, Inc. H133S090067 Salt Lake City, UT 3-71

Mount Sinai School of Medicine H133A080053 New York, NY 2-31

Mount Sinai School of Medicine H133B040033 New York, NY 2-8

Mount Sinai School of Medicine H133P050004 New York, NY 8-35

Mount Sinai School of Medicine H133A070033 New York, NY 2-30

Mount Sinai School of Medicine H133N060027 New York, NY 2-56

National Public Radio H133G060187 Washington, DC 3-32

National Public Radio H133G070093 Washington, DC 3-34

National Public Radio H133G090139 Washington, DC 3-35

National Rehabilitation Hospital

|MedStar Research Institute| H133N060028 Washington, DC 2-50

National Rehabilitation Hospital

 MedStar Research Institute| H133B031114 Washington, DC 2-5

New Jersey Institute of Technology H133E050011 Newark, NJ 3-14

North Carolina State University H133G070135 Raleigh, NC 3-47

Northeastern University H133G070150 Boston, MA 6-10

Northwestern University H133G070089 Chicago, IL 3-38

Northwestern University H133P040007 Chicago, IL 8-23

Northwestern University H133P030002 Chicago, IL 8-22

Northwestern University H133E080009 Chicago, IL 3-12

Northwestern University H133P080006 Chicago, IL 8-25

Obslap, Inc. H133S070082 Eugene, OR 3-79

Ohio State University H133A080023 Columbus, OH 2-35
B-6 Grantees

Ohio Valley Center for

Brain Injury Prevention and

Rehabilitation H133A070029 Columbus, OH 2-34

ORC Macro ED-04-CO0018/0007 Silver Spring, MD 6-12

Oregon Health and Science University H133G080162 Portland, OR 3-52

Oregon Health and Science University H133B040034 Portland, OR 2-10

Oregon Health and Science University H133G070129 Portland, OR 3-51

Oregon Health and Science University H133G070214 Portland, OR 2-83

Oregon Health and Science University H133A031724 Portland, OR 4-19

Oregon Health and Science University H133A080031 Portland, OR 2-36

Oregon State University H133G090242 Corvallis, OR 3-49

OrthoCare Innovations, LLC H133S090044 Oklahoma City, OK 3-70

Portland State University H133G080132 Portland, OR 4-38

Portland State University H133B040038 Portland, OR 4-10

Portland State University H133B090019 Portland, OR 4-11

Portland State University H133G070190 Portland, OR 4-37

Preethy Samuel, PhD H133F080024 Detroit, MI 8-19

Public Health Institute H133A060098 Oakland, CA 7-12

RAF Models & Displays H133G060284 Winston-Salem, NC 3-48

Rehabilitation Ideas-Wheelchair

Products and Accessories, Inc. H133S090106 Tampa, FL 3-62

Rehabilitation Institute of Chicago H133G090093 Chicago, IL 2-72

Rehabilitation Institute of Chicago H133N060014 Chicago, IL 2-52

Rehabilitation Institute of Chicago H133G060124 Chicago, IL 2-69

Rehabilitation Institute Research

Corporation H133G060055 Chicago, IL 3-37

Rehabilitation Institute Research

Corporation H133G070074 Chicago, IL 2-70

Rehabilitation Institute Research

Corporation H133E070013 Chicago, IL 3-11

Rehabilitation Institute Research

Corporation H133B080031 Chicago, IL 2-7

Rehabilitation Institute Research

Corporation H133A080045 Chicago, IL 2-22

RehabTek, LLC H133S080076 Wilmette, IL 3-74

San Francisco State University H133A090020 San Francisco, CA 3-27

Sang Wook Lee, PhD H133F090018 Chicago, IL 8-17

Sangeetha Madhavan, PhD H133F090009 Chicago, IL 8-16

Santa Clara Valley Medical Center

(SCVMC) H133G080165 San Jose, CA 2-63

Santa Clara Valley Medical Center

(SCVMC) H133G080168 San Jose, CA 2-62

Santa Clara Valley Medical Center

(SCVMC) H133A070038 San Jose, CA 2-16

Science, Math and Engineering, Inc. H133S090064 Billerica, MA 3-65

SEDL H133A060028 Austin, TX 6-7
Grantees B-7

SEDL H133A080007 Austin, TX 1-19

Sendero Group, LLC H133S090026 Davis, CA 3-58

Shepherd Center, Inc. H133G080153 Atlanta, GA 4-20

Shepherd Center, Inc. H133G080031 Atlanta, GA 2-68

Shepherd Center, Inc. H133N060009 Atlanta, GA 2-51

Shepherd Center, Inc. H133G070171 Atlanta, GA 2-67

Southern University A&M College H133A031705 Baton Rouge, LA 8-7

Syracuse University H133P070004 Syracuse, NY 8-36

Syracuse University H133A060094 Atlanta, GA 7-6

Syracuse University H133A060033 Syracuse, NY 1-17

Syracuse University H133A090004 Syracuse, NY 1-18

Syracuse University H133A080014 Syracuse, NY 4-17

Teaching Research Institute H133G090227 Eugene, OR 3-50

Texas Southern University H133A031704 Houston, TX 8-10

The Institute for Rehabilitation and

Research (TIRR) H133A060091 Houston, TX 7-9

The Institute for Rehabilitation and

Research (TIRR) H133A070043 Houston, TX 2-41

The Institute for Rehabilitation and

Research (TIRR) H133B090023 Houston, TX 4-13

The Institute for Rehabilitation and

Research (TIRR) H133N060003 Houston, TX 2-60

The Rehabilitation Institute Research

Corporation H133B090024 Chicago, IL 5-4

The Sandbox Learning Company H133G080151 Cornelius, NC 4-33

The Smith-Kettlewell Eye Research

Institute H133E060001 San Francisco, CA 3-3

The Smith-Kettlewell Eye Research

Institute H133A060056 San Francisco, CA 3-26

The University of Kansas H133B060018 Lawrence, KS 4-6

The University of Texas Southwestern

Medical Center H133A070027 Dallas, TX 2-39

The University of Texas Southwestern

Medical Center H133A070024 Dallas, TX 2-38

Thomas Jefferson University H133N060011 Philadelphia, PA 2-58

Through the Looking Glass H133A080034 Berkeley, CA 4-14

Touch Graphics, Inc. H133S090137 New York, NY 3-78

TransCen, Inc. H133A060085 Rockville, MD 7-5

UMBC H133G050354 Baltimore, MD 3-41

University at Buffalo The State

University of New York H133A050008 Buffalo, NY 6-6

University at Buffalo| he State

University of New York H133E050004 Buffalo, NY 3-15

University at Buffalo The State

University of New York H133A080050 Amherst, NY 6-5

University at Buffalo The State

University of New York H133G080043 Buffalo, NY 4-30
B-8 Grantees

University of Alabama/Birmingham H133A070039 Birmingham, AL 2-15

University of Alabama/Birmingham H133A060039 Birmingham, AL 6-3

University of Alabama/Birmingham H133N060021 Birmingham, AL 2-48

University of Arkansas H133A060044 Little Rock, AR 1-14

University of Arkansas for Medical

Sciences H133G090170 Little Rock, AR 1-21

University of California H133G090111 Irvine, CA 3-30

University of California, Davis H133B090001 Davis, CA 2-4

University of California, Davis H133B031118 Davis, CA 2-3

University of California, San Francisco H133B080002 San Francisco, CA 4-3

University of Colorado H133E090003 Denver, CO 3-5

University of Colorado H133E040019 Denver, CO 3-4

University of Colorado Denver -

Anschutz Medical Campus H133A070006 Aurora, CO 2-17

University of Colorado Health

Sciences Center H133G070163 Boulder, CO 5-7

University of Delaware H133G080047 Newark, DE 3-31

University of Illinois at Chicago H133G070006 Chicago, IL 2-71

University of Illinois at Chicago H133A040007 Chicago, IL 8-5

University of Illinois at Chicago H133P060003 Chicago, IL 8-24

University of Illinois at Chicago H133B050003 Chicago, IL 8-3

University of Illinois at Chicago H133G080120 Chicago, IL 3-39

University of Illinois at Chicago H133E070029 Chicago, IL 3-10

University of Illinois at Chicago H133A060066 Chicago, IL 2-21

University of Illinois at Chicago H133A060097 Chicago, IL 7-7

University of Illinois at Chicago H133B080009 Chicago, IL 4-5

University of Kansas H133G060238 Kansas City, KS 4-22

University of Kansas H133G090222 Lawrence, KS 4-23

University of Kansas H133G090230 Olathe, KS 2-73

University of Kansas H133G090136 Kansas City, KS 3-34

University of Maryland/

Baltimore County H133G090133 Baltimore, MD 5-8

University of Massachusetts Boston H133A090002 Boston, MA 1-15

University of Massachusetts Boston H133A080042 Boston, MA 4-16

University of Massachusetts Boston H133B070001 Boston, MA 1-3

University of Massachusetts Medical

School H133B090018 Worcester, MA 1-6

University of Medicine and Dentistry

of New Jersey H133P050006 Scotch Plains, NJ 8-32

University of Medicine and Dentistry

of New Jersey/New Jersey Medical

School (UMDNJ/NJMS) and|Kessler

Medical Rehabilitation Research and

Education Center (KMRREC)| H133P070007 West Orange, NJ 8-33

University of Medicine and Dentistry

New Jersey Medical School| H133P090009 West Orange, NJ 8-34

University of Miami H133G080150 Miami, FL 2-66
Grantees B-9

University of Miami H133G070119 Miami, FL 2-65

University of Michigan H133G050151 Ann Arbor, MI 2-74

University of Michigan H133N060032 Ann Arbor, MI 2-54

University of Michigan H133G090006 Ann Arbor, MI 4-27

University of Michigan H133P090008 Ann Arbor, MI 8-29

University of Michigan H133G090005 Ann Arbor, MI 3-45

University of Michigan H133P030004 Ann Arbor, MI 8-28

University of Michigan H133E060064 Ann Arbor, MI 3-13

University of Michigan H133G070020 Ann Arbor, MI 2-76

University of Michigan H133G070044 Ann Arbor, MI 2-75

University of Minnesota H133A080049 Minneapolis, MN 2-25

University of Minnesota H133G080029 Minneapolis, MN 5-9

University of Minnesota H133B080005 Minneapolis, MN 4-9

University of Missouri/Columbia H133A060089 Columbia, MO 7-10

University of Missouri/Columbia H133P050005 Columbia, MO 8-31

University of Montana H133B030501 Missoula, MT 1-7

University of Montana H133G070196 Missoula, MT 4-29

University of Montana H133B080023 Missoula, MT 1-8

University of Nebraska at Omaha H133G080023 Omaha, NE 2-79

University of North Carolina H133G090124 Chapel Hill, NC 2-82

University of North Carolina at

Chapel Hill H133G070072 Chapel Hill, NC 4-32

University of Pennsylvania H133B080029 Philadelphia, PA 4-12

University of Pittsburgh H133P090010 Pittsburgh, PA 8-37

University of Pittsburgh H133E040012 Pittsburgh, PA 3-18

University of Pittsburgh H133N060019 Pittsburgh, PA 2-59

University of Pittsburgh H133E070024 Pittsburgh, PA 3-19

University of Pittsburgh H133A021916 Pittsburgh, PA 3-29

University of Pittsburgh H133E090002 Pittsburgh, PA 3-21

University of Rochester

School of Medicine H133G090189 Rochester, NY 4-31

University of South Carolina H133G090036 Columbia, SC 4-39

University of South Florida H133B040024 Tampa, FL 4-4

University of Southern California H133E080024 Los Angeles, CA 2-14

University of Texas Medical Branch H133G080163 Galveston, TX 5-10

University of Texas Medical Branch H133G050079 Galveston, TX 4-40

University of Texas Medical Branch H133P040003 Galveston, TX 8-38

University of Texas Medical Branch H133A070026 Galveston, TX 2-40

University of Washington H133A070047 Seattle, WA 2-46

University of Washington H133P080008 Seattle, WA 8-42

University of Washington H133A070032 Seattle, WA 2-47

University of Washington H133A060107 Seattle, WA 2-45

University of Washington H133A020103 Seattle, WA 2-43

University of Washington H133A040004 Seattle, WA 2-44

University of Washington H133A060070 Seattle, WA 6-9

University of Washington H133N060033 Seattle, WA 2-61

University of Washington H133G070016 Seattle, WA 2-93
B-10 Grantees

University of Washington H133B080024 Seattle, WA 2-13

University of Washington H133B080025 Seattle, WA 2-12

University of Washington H133A070048 Mountlake Terrace, WA 7-13

University of Washington H133G090022 Seattle, WA 2-94

University of Wisconsin/Madison H133E080022 Madison, WI 3-24

University of Wisconsin/Madison H133E040013 Madison, WI 3-22

University of Wisconsin/Madison H133E090001 Madison, WI 3-25

University of Wisconsin/Milwaukee H133G060218 Milwaukee, WI 2-95

Vanderbilt University School of

Medicine H133G060012 Nashville, TN 3-53

VCom3D, Inc. H133S090134 Orlando, FL 3-73

VCom3D, Inc. H133S090074 Orlando, FL 3-61

Virginia Commonwealth University H133P090013 Richmond, VA 8-41

Virginia Commonwealth University H133A080060 Richmond, VA 8-11

Virginia Commonwealth University H133G080123 Richmond, VA 5-11

Virginia Commonwealth University H133B040011 Richmond, VA 1-13

Virginia Commonwealth University H133A060087 Richmond, VA 6-8

Virginia Commonwealth University H133P040006 Richmond, VA 8-40

Virginia Commonwealth University H133A070036 Richmond, VA 2-42

Virginia Commonwealth University H133A080027 Richmond, VA 1-20

Washington State University H133G070055 Spokane, WA 5-12

Wayne State University H133G060267 Detroit, MI 4-28

Wayne State University H133G080064 Detroit, MI 2-77

Wayne State University H133A080044 Detroit, MI 2-24

Western Oregon University H133A060075 Eugene, OR 4-18

WGBH Educational Foundation H133G070122 Boston, MA 3-42

WGBH Educational Foundation H133G080093 Boston, MA 3-43

Wright State University H133B040012 Kettering, OH 1-12

Yin Ling Irene Wong, PhD H133F090035 Philadelphia, PA 8-13

Yi-Ning Wu, PhD H133F090042 Chicago, IL 8-15
Projects by State

Projects by State C-3

Alabama

National Spinal Cord Injury Statistical

Center (NSCISC) .......................................... 6-3

UAB Model Spinal Cord Injury Care

System......................................................... 2-48

University of Alabama at Birmingham

(UAB) Traumatic Brain Injury Model

System (UAB TBIMS) ............................... 2-15

Arkansas

Beyond Hearing Aids: Training Resources

to Improve the Capacity of VR Professionals

Serving Consumers who are Hard of

Hearing and Late Deafened ........................ 1-21

Improve the Employment Outcomes for the

Low Functioning Deaf (LFD) Population ... 1-14

California

A New Measure of Subjective Fatigue in

Persons with Traumatic Brain Injury ........... 2-62

A Robotic Powered Wheelchair Trainer

with Haptic Guidance as Needed ................ 3-30

Development of a Global Access

Information Navigation (GAIN) for

Persons Who Are Blind or Have Low

Vision .......................................................... 3-58

Disability and Business Technical

Assistance Center (DBTAC) — Pacific

ADA Center ................................................ 7-12

Evaluating Dysphagia in Individuals with

Spinal Cord Injury: Assessing Incidence,

Associated Factors, and Preventable

Complications ............................................. 2-63

Fundamental Issues in Wayfinding

Technologies ............................................... 3-26

Hearsay: A Context-Driven Assistant

Browser for Non-Visual Web Access ......... 3-57

National Center for Parents with Disabilities

and Their Families....................................... 4-14

Northern California Traumatic Brain Injury

Model System of Care ................................. 2-16

Personal Assistance Services (PAS) in the

21st Century .................................................. 4-3

Rehabilitation Engineering Research Center

for Successful Aging with Disability:

Optimizing Participation Through

Technology (OPTT-RERC) ........................ 2-14

Rehabilitation Engineering Research Center:

Develop and Evaluate Technology for Low

Vision, Blindness, and Multi-Sensory Loss... 3-3

Rehabilitation Research and Training Center

in Neuromuscular Diseases (RRTC/NMD) ... 2-3

Rehabilitation Research and Training Center

in Neuromuscular Diseases (RRTC-NMD) .. 2-4

Technology Access in Resource-Limited

Environments .............................................. 3-27

Colorado

ATLAS: An Accessible Testing, Learning,

and Assessment System for Individuals with

Intellectual Disabilities to Facilitate Inclusion

and Access to the General Curriculum ........ 3-72

Collaborative Spinal Cord Injury Model

Systems Centers Program: Improving

Spinal Cord Injury Rehabilitation

Outcomes .................................................... 2-18

CTAS: A Self-Directed Computer

Technology Assessment System for

Students and Adults with Intellectual

Disabilities................................................... 3-59

DBTAC Rocky Mountain ADA Center -

Region VIII ................................................. 7-11

Developing a Relevant Instrument to Assess

Caregiver Distress and Benefit in Spinal

Cord Injury .................................................. 2-64

LiveWire: A Context-Aware, LocationBased Wireless Activity Support System to

Facilitate Independence for Individuals with

Intellectual Disabilities ................................ 3-60

Public Spending for Disability in the United

States: A Comparative, Longitudinal Study . 5-7

Rehabilitation Engineering Research Center

for Cognitive Rehabilitation .......................... 3-5

Rehabilitation Engineering Research Center

for the Advancement of Cognitive

Technologies (RERC-ACT) ......................... 3-4

The National Data and Statistical Center for

the Traumatic Brain Injury Model Systems . 2-19

The Rocky Mountain Regional Brain Injury

System (RMRBIS) ...................................... 2-20

The Rocky Mountain Regional Spinal Injury

System......................................................... 2-49

UCHSC Burn Model System Data

Coordination Center (BMS/DCC) .............. 2-17
C-4 Projects by State

Delaware

Multimodal Access to Information

 Graphics..................................................... 3-31

District of Columbia

Accessible Digital Radio Broadcast

Services....................................................... 3-32

An Automatic Fitting Algorithm for

Cochlear Implant ......................................... 3-33

National Capital Spinal Cord Injury Model

System......................................................... 2-50

Personal Audio Information Service ........... 3-34

Rehabilitation Engineering Research Center

on Hearing Enhancement .............................. 3-6

Rehabilitation Research and Training Center

 on Secondary Conditions in Spinal Cord

Injury ............................................................. 2-6

Rehabilitation Research and Training Center

on Spinal Cord Injury: Promoting Health a

nd Preventing Complications through

Exercise ......................................................... 2-5

The Captioned Braille Radio Initiative:

Providing Emergency Information for

Individuals who are Deaf-Blind .................. 3-35

Florida

Exercise Treatment of Obesity-Related

Secondary Conditions in Adults with

Paraplegia .................................................... 2-66

Increasing Mobility and Maneuverability of

Wheelchairs for Indoor, Transportation, and

Recreational Activities ................................ 3-62

Investigating the Effects of Snoezelen in

Children Recovering from Severe Brain

Injury ........................................................... 2-65

Mobile Math Signing Dictionary for iPod

Touch .......................................................... 3-61

Rehabilitation Research and Training Center

for Children’s Mental Health ......................... 4-4

Signing Science Pictionary for Young

 Learners Who are Deaf or Hard of

Hearing ....................................................... 3-73

Georgia

Assessing Safety Risk after Traumatic Brain

Injury ........................................................... 4-20

Biopsychosocial Factors that Predict TBI

Post-Acute Rehabilitation Outcomes........... 2-67

DBTAC: Southeast ADA Center -

Region IV ..................................................... 7-6

Evaluating the Effects of Activity-Based

Therapy for Individuals with Chronic

Spinal Cord Injury ....................................... 2-68

Georgia Regional Spinal Cord Injury Care

System......................................................... 2-51

Rehabilitation Engineering Research Center

for Wheeled Mobility in Everyday Life ........ 3-9

Rehabilitation Engineering Research Center

for Wireless Technologies ............................. 3-7

Rehabilitation Engineering Research Center

on Workplace Accommodations ................... 3-8

Workplace Accommodation Wizard: An

Assessment and Accommodation Tool for

Employers ................................................... 3-36

Illinois

A Low-Cost Portable/Wearable Device for

Intelligent Stretching and Movement

Training of Hypertonic Forearm in Stroke

with Outcome Evaluation ............................ 3-74

Advanced Rehabilitation Research

Training Project in Rehabilitation Services

Research ...................................................... 8-22

Advanced Rehabilitation Research

Training Project in Rehabilitation Services

Research ...................................................... 8-25

Advanced Training in Translational and

Transformational Research to Improve

Vocational Outcomes for Persons with

Disabilities................................................... 8-24

Augmenting Language Therapy for

Aphasia: A Randomized Double-Blind

Placebo-Controlled Trial of Levodopa in

Combination with Speech-Language

Therapy ....................................................... 2-70

Center for Strategic Capacity Building on

Minorities with Disabilities Research ............ 8-5

Client-Centered Practices in Spinal Cord

Injury (SCI) Rehabilitation .......................... 8-18

DBTAC: Great Lakes ADA Center .............. 7-7

Does the Non-Lesioned Hemisphere

Influence Paretic Lower Limb Motor

Function Following Stroke? ........................ 8-16
Projects by State C-5

Effectiveness of a Teleconference Fatigue

Management Program for People with

Multiple Sclerosis........................................ 2-71

Enhanced Motor Recovery Using

Serotonergic Agents.................................... 2-69

Homeless Mentally Ill: Strategies for

Maintaining Residential Stability ................. 4-21

Midwest Regional Spinal Cord Injury Care

System (MRSCIS) ...................................... 2-52

Midwest Regional Traumatic Brain Injury

Model System: Innovative Approaches to

Improve Cognition, Function, and

Community Living ...................................... 2-22

Noninvasive Examination of ALS Using

Surface EMG .............................................. 2-72

Overcoming Gravity Induced Arm and

Hand Dysfunction to Restore Functional

Reaching Following Stroke ......................... 3-38

Reducing Obesity and Obesity-Related

Secondary Conditions in Adolescents with

Disabilities................................................... 2-21

Rehabilitation Engineering Research Center

for Prosthetics and Orthotics ....................... 3-12

Rehabilitation Engineering Research Center

on Recreational Technologies and Exercise

Physiology Benefiting Persons with

Disabilities (RERC RecTech) ..................... 3-10

Rehabilitation Research and Training Center

for Health and Function Across the Lifespan

of Individuals with Intellectual and

Developmental Disabilities............................ 4-5

Rehabilitation Research and Training Center

on Enhancing the Functional and

Employment Outcomes of Individuals Who

Experience a Stroke ...................................... 2-7

Rehabilitation Research and Training Center

 on Improving Measurement of Medical

Rehabilitation Outcomes ............................... 5-4

Rehabilitation Research and Training Center

on Measuring Rehabilitation Outcomes and

Effectiveness ................................................. 5-3

Rehabilitation Robotics and

Telemanipulation Machines Assisting

Recovery from Stroke Rehabilitation

Engineering Research Center (MARSRERC) ........................................................ 3-11

Rehabilitation Science for Basic Scientists

and Engineers: An Advanced Training

Program....................................................... 8-23

Subject-Specific EMG Pattern Classification

to Promote Hand Rehabilitation in Stroke

Survivors..................................................... 8-17

The Effectiveness of Intelligent-Stretching

Followed by Active Movement in Children

with Cerebral Palsy ..................................... 8-15

University of Illinois at Chicago National Research and Training Center on Psychiatric

Disability ....................................................... 8-3

Video Gaming Technology to Promote

Health and Fitness Among Adolescents

with Disabilities........................................... 3-39

Virtual Reality-Based Assessment Tool for

Spatial Neglect Following Stroke ................ 8-14

Web-Based Treatment for Aphasia .............. 3-37

Indiana

A Navigation and Object-Location System

to Assist Blind and Low-Vision Individuals

in Indoor Environments............................... 3-63

Hearing Companion: Handheld Portable

Sound Identification and Critical Alerting

Functionality for People Who Are Deaf or

Have Hearing Loss ..................................... 3-75

Variable Position Mid-Wheel Drive System

for Power Wheelchairs................................ 3-64

Kansas

Accommodations and ADA for PostSecondary Students with Disabilities .......... 4-23

Combining Technologies to Maximize

Outcomes: Telemedicine and Online

 Training Program for Parents of Children

with Autism................................................. 4-22

Experimental Evaluation of the Online and

Applied System for Intervention Skills

(OASIS) Training Program Using VideoConferencing for Parents of Children with

an Autism Spectrum Disorder ..................... 3-34

Rehabilitation Research and Training Center

on Measurement and Interdependence in

Community Living (RRTC/MICL) ............... 4-6

Weight Loss by Individuals with Physical

Disabilities................................................... 2-73
C-6 Projects by State

Louisiana

Evacuation Methodology and

Understanding Behavior of Persons with

Disabilities in Disasters: A Blueprint for

Emergency Planning Solutions ................... 4-15

Rehabilitation Research Institute for

Underrepresented Populations (RRIUP) ....... 8-7

Maryland

ABLEDATA............................................... 6-12

DBTAC: Mid-Atlantic ADA Center ............. 7-5

Demographic Soup: Disentangling the

Conceptual, Political, and Methodological

Dimensions of Disability Statistics .............. 8-12

Health Care Disparities in Access and

Utilization among Individuals with

Disabilities..................................................... 5-8

Johns Hopkins University Burn Injury

Rehabilitation Model System (JHUBIRMS) ...................................................... 2-23

National Rehabilitation Information Center

(NARIC) ..................................................... 6-11

Optimized Hands-Free Speech

Recognition ................................................. 3-41

Massachusetts

A Center on Postsecondary Education for

Students with Intellectual Disabilities.......... 4-16

Advanced Research Training Program in

Psychiatric Rehabilitation ............................ 8-27

Caption Accuracy Metrics Development

Project ......................................................... 3-43

Captioning Solutions for Handheld Media

and Mobile Devices Development .............. 3-42

Clothing Worn by Individuals with Visual

Impairments as a Hands-Free Common

Platform for GPS WayFinding Systems and

Obstacle Avoidance Systems ...................... 3-65

Cooling System for Multiple Sclerosis

Patients........................................................ 3-66

Development of Measures of Participation

and Environment for Children with

Disabilities................................................... 4-25

EVIDAAC: A Database of Appraised

Evidence in Augmentative and Alternative

Communication ........................................... 6-10

Improved Employment Outcomes for

 Individuals with Psychiatric Disabilities....... 1-5

Innovative Knowledge Dissemination and

Utilization for Disability and Professional

Organizations and Stakeholders .................... 6-4

Instrument to Measure Recovery-Promoting

Competence Among Providers Serving

Spanish Speaking Mental Health

Consumers .................................................. 4-24

Learning and Working During the

Transition to Adulthood ................................ 1-6

Life Skills: Transitioning from

Homelessness and Isolation to Housing

Stability and Community Integration ........... 4-26

Minimal Classroom Requirements for

Optimal Acoustic Access to Speech by

Children with and Without Hearing Loss.... 3-44

Opening Doors for Children with

Disabilities and Special Health Care Needs .. 4-8

Post-Doctoral Fellowship in Rehabilitation

Outcomes and Effective Research ............... 8-26

DBTAC-New England ADA Center -

Region I ........................................................ 7-3

Rehabilitation Research and Training Center

for Recovery and Recovery Oriented

Psychiatric Rehabilitation for Persons with

Long-Term Mental Illness ............................. 4-7

Rehabilitation Research and Training Center

for Vocational Rehabilitation Research ......... 1-3

Research and Technical Assistance Center

on Vocational Rehabilitation Program

Management................................................ 1-15

The New England Regional Spinal Cord

Injury Center ............................................... 2-53

Michigan

Adapted Assessment of Speed of

Information Processing in Children with

Cerebral Palsy ............................................. 2-75

Michigan Traumatic Brain Injury Model

System (SEMTBIS) .................................... 2-24

Neuroanatomical Correlates of Positive

Psychology Among People with Traumatic

Brain Injury: A Biopsychosocial Model ...... 2-77

Pathways to Depression: An Examination

of Vulnerability and Stress in Adults with

Spinal Cord Injury ....................................... 2-76
Projects by State C-7

Preparations for In-home Testing of BrainComputer Interfaces Operating Assistive

Technology ................................................. 3-45

Psychometric Evaluation of the Family

Quality of Life Survey for Minority

Families....................................................... 8-19

Rehabilitation Engineering Research Center

on Wheelchair Transportation Safety .......... 3-13

Sensorimotor Training and Assessment in

Adults with Hemiplegic Cerebral Palsy: The

ULTrA Program .......................................... 2-74

The Effects of a Bicycle Training

Intervention on Health, Physical Activity,

Sleep, and Community Participation in

Youth with Down Syndrome and Autism

Spectrum Disorders..................................... 4-27

The UMHS/AACIL Rehabilitation Research

Training Program ........................................ 8-28

The UMHS/AACIL Rehabilitation Research

Training Program ........................................ 8-29

University of Michigan Model Spinal Cord

Injury Care System...................................... 2-54

Work Environment and Quality of Life Outcomes: A Comparison of the Experiences of

Formal and Informal Caregivers of Persons

with Spinal Cord Injuries ............................ 4-28

Minnesota

A Display Reader for the Vision Impaired .. 3-67

Connectivity to Modern Electronics for the

Hearing Disabled ........................................ 3-77

Development and Use of a Multi-State

Database on Individual Outcomes and their

Predictors for Persons with Intellectual and

Developmental Disabilities in the US ............ 5-9

Health Care Coordination for Individuals

with Physical Disabilities: Critical Elements

and Consumer Outcomes ............................ 2-25

Mayo Clinic Traumatic Brain Injury Model

System......................................................... 2-26

Rehabilitation Research and Training Center

for Community Living and Employment for

Individuals with Intellectual and

Developmental Disabilities............................ 4-9

Transportation Assistant for the Cognitively

Impaired ...................................................... 3-68

Wireless Wrist Device to Alert the Deaf of

Sounds and Events in Their Environment ... 3-76

Mississippi

Vocational Rehabilitation: Transition

Services that Lead to Competitive

Employment Outcomes for Transition-Age

Individuals with Blindness or Other Visual

Impairments................................................. 1-16

Missouri

DBTAC - Great Plains ADA Center -

Region VII .................................................. 7-10

Health Activity Rehabilitation Research

Training Center (HARRTC) ....................... 8-31

Montana

CIL-Based Abuse Education and Safety

Planning Program for Women with

Disabilities................................................... 4-29

Rehabilitation Research and Training Center

on Disability in Rural Communities .............. 1-7

Rehabilitation Research and Training Center

on Disability in Rural Communities .............. 1-8

Nebraska

Development of an Intelligently Controlled

Assistive Rehabilitation Elliptical (ICARE)

Training System to Promote Walking and

Fitness in Persons with Physical

Limitations .................................................. 2-78

Investigation of Interventions for Sitting

Postural Control in Young Children with

Moderate to Severe Cerebral Palsy ............. 2-79

New Hampshire

Building Knowledge and Capacity in the

Rehabilitation and Recovery of AfricanAmericans Suffering from Severe Mental

Illness: The Dartmouth-Howard

Collaboration. ................................................ 8-8

Cognitive Remediation, Illness SelfManagement, and Supported Employment in

Severe Mental Illness .................................. 1-23

Cognitive Training and Supported

Employment in Severe Mental Illness ......... 1-22
C-8 Projects by State

New Jersey

A Multicenter Prospective Randomized Controlled Trial of the Effectiveness of

Amantadine Hydrochloride in Promoting

Recovery of Function Following Severe

Traumatic Brain Injury ................................ 2-27

Advanced Psychiatric Rehabilitation

Research on Employment and Community

Integration ................................................... 8-32

Advanced Rehabilitation Research Training

Center on Neurocognitive Rehabilitation .... 8-34

Advanced Rehabilitation Research Training

Center on Neuro-musculoskeletal

Rehabilitation .............................................. 8-33

Improved Weight Bearing Evaluation of

Knee Osteoarthritis...................................... 3-46

Improving New Learning and Memory in

TBI: Applying fMRI to Measure

Outcome ...................................................... 2-81

JFK-Johnson Rehabilitation Institute TBI

Model System ............................................. 2-28

Northern New Jersey Spinal Cord Injury

System......................................................... 2-55

Northern New Jersey Traumatic Brain Injury

System (NNJTBIS) ..................................... 2-29

Quality of Life in Traumatic Brain Injury

Research and Practice: Development of the

TBI-QOL .................................................... 2-80

Rehabilitation Engineering Research Center

on Children with Orthopedic Disabilities .... 3-14

New York

Advanced Rehabilitation Research and

Disability Policy Training Center ................ 8-36

Advanced Rehabilitation Research Training

Program....................................................... 8-35

Asset Accumulation and Economic SelfSufficiency (AAESS).................................. 4-17

Audio-Tactile Interactive Computing with

the Livescribe Pulse Pen ............................. 3-78

Center for International Rehabilitation

Research Information and Exchange

(CIRRIE-2) ................................................... 6-6

Center on Effective Delivery of

Rehabilitation Technology by Vocational

Rehabilitation Agencies .............................. 1-18

Center on Knowledge Translation for

Technology Transfer ..................................... 6-5

Classification and Measurement of Medical

Rehabilitation Interventions......................... 2-31

Controlled Study of Affect Recognition

Training for Individuals with Traumatic

Brain Injury ................................................. 4-30

Demand-Side Employment Placement

Models ........................................................ 1-17

Direct vs. Interpreted Administration of the

SPAT ........................................................... 4-31

Disability and Business Technical

Assistance Center - Northeast ....................... 7-4

Early Math Intervention Program for

Improved Comprehension and

Communication in Problem Solving for

Students with Learning Disabilities............. 3-69

Mount Sinai Spinal Cord Injury Model

System......................................................... 2-56

New York Traumatic Brain Injury Model

System (NYTBIMS) ................................... 2-30

Rehabilitation Engineering and Research

 Center (RERC) on Universal Design and

the Built Environment at Buffalo ................ 3-15

Rehabilitation Research and Training Center

on Demographics and Statistics ..................... 5-5

Rehabilitation Research and Training Center

on Disability Statistics and Demographics .... 5-6

Rehabilitation Research and Training Center

on Employment Policy and Individuals with

Disabilities..................................................... 1-9

Rehabilitation Research and Training Center

on Employment Service Systems ................ 1-11

Rehabilitation Research and Training Center

on Traumatic Brain Injury Interventions ........ 2-8

North Carolina

Carolinas Traumatic Brain Injury

Rehabilitation and Research System

(CTBIRRS)................................................. 2-32

Consortium for Assistive Technology

Outcomes Research (CATOR) II ................ 3-28

Daily Living and Community Skills Video

Game for Children with Developmental

Disabilities................................................... 4-33

Improving Cervical and Breast Cancer

Screening for Women with Intellectual

Disabilities................................................... 2-82
Projects by State C-9

Improving Representative Payeeship for

People with Psychiatric Disabilities and

their Families............................................... 4-32

Micromachined Braille Reader.................... 3-47

Rehabilitation Engineering Research Center

for Communication Enhancement (AACRERC) ........................................................ 3-17

Rehabilitation Engineering Research Center

on Communication Enhancement ............... 3-16

TBI Model System Collaborative Study of

Amantadine for Post TBI Irritability and

Aggression .................................................. 2-33

Universal Design of Tactile Exhibits with

Touch Activated Descriptive Audio for

Aquariums................................................... 3-48

Ohio

Developing College Campuses as Transition

Settings for Students with Severe and

Multiple Disabilities Aged 18-21 ................ 4-36

Individualized Planning for the First Year

Following Acute Rehabilitation Project ...... 2-35

Northeast Ohio Regional Spinal Cord Injury

System......................................................... 2-57

Ohio Regional TBI Model System .............. 2-34

Rehabilitation Research and Training Center

 on Interventions for Children and Youth

with TBI ........................................................ 2-9

Rehabilitation Research and Training Center

on Substance Abuse, Disability, and

Employment ................................................ 1-12

Teen Online Problem Solving for Pediatric

Brain Injury ................................................. 4-34

Web Therapy to Improve Outcomes After

Traumatic Brain Injury in Young Children .. 4-35

Oklahoma

Haptic Feedback Improvements for

Prostheses.................................................... 3-70

A Means of Expression: Online

Communication Assessment to Improve

Outcomes for Individuals with Severe

Disabilities................................................... 3-51

ADL Access: A Cognitively Accessible

Software Application for Augmented SelfManagement of Activities of Daily Living .. 4-42

Development of a Safety-Planning Tool for

Men with Disabilities .................................. 4-37

Health and Health Care Disparities Among

Individuals with Disabilities ........................ 2-36

Identification and Reporting of Violence by

People with Disabilities............................... 4-19

My ScrivenerTM Innovative Technology to

Enhance Fine Motor Function ..................... 3-79

Parent-Infant Interaction Project (PIIP) ....... 4-38

Rehabilitation Research and Training Center

for Community Integration for Individuals

with Disabilities, Strengthening Family and

Youth Participation in Child and Adolescent

Mental Health Services ............................... 4-10

Rehabilitation Research and Training Center

for Pathways to Positive Futures: Supporting

Successful Transition for Youth and Young

Adults with Serious Mental Health

Conditions................................................... 4-11

Rehabilitation Research and Training Center

on Health and Wellness in Long Term

Disability ..................................................... 2-10

Researching Accessibility Gaps in Transit

Hub Communication Systems and

Standards..................................................... 3-49

RISE - Reflection, Insight, and SelfEmpowerment: Development of a Cognitive

Behavioral Group Therapy Intervention for

Women with Physical Activity Disabilities

who Experience Depression ........................ 2-83

School Transition & re-Entry Program

(STEP): Systematic Hospital-to-School

Transition for Students with Traumatic Brain

Injury ........................................................... 4-18

Systematic Study of the Effectiveness of

AAC Intervention to Improve Conversation

in Individuals with Degenerative Language

Disorders..................................................... 3-52

Television Assisted Promotion (TAP):

Enhancing Rehabilitation Outcomes with

Familiar Technology ................................... 3-81

The TATE Project: Training Assistive

Technology in the Environment .................. 3-50

Why Go It Alone? The Use of Public

Resources to Enhance Computer

Accessibility for Individuals with

 Intellectual Disabilities ............................... 3-80
C-10 Projects by State

Pennsylvania

Career Advancement for Engineers in the

Science of Rehabilitation (CAESOR) ......... 8-37

Cross-Disability Study of CRS ................... 8-13

Information Technology for Independence:

Community-Based Research ....................... 3-29

Low Vision Lime: Solution for Low Vision

Musicians to Read, Perform, Write, and

Print Music Notation ................................... 3-82

Regional Spinal Cord Injury Center of the

Delaware Valley .......................................... 2-58

Rehabilitation Engineering Research Center

on Accessible Public Transportation ........... 3-20

Rehabilitation Engineering Research Center

on Spinal Cord Injury .................................. 3-19

Rehabilitation Engineering Research Center

on Telerehabilitation .................................... 3-18

Rehabilitation Engineering Research Center

on Telerehabilitation .................................... 3-21

Rehabilitation Research and Training Center

on Participation and Community Living of

Individuals with Psychiatric Disabilities...... 4-12

The Moss Traumatic Brain Injury Model

System......................................................... 2-37

Treatment Components and Active

Ingredients in a Scheduled Telephone

Intervention for Traumatic Brain Injury....... 2-84

Understanding the Determinants of Motor

Ability, Self-Care, and Play of Young

Children with Cerebral Palsy ...................... 2-86

University of Pittsburgh Model Center on

Spinal Cord Injury ....................................... 2-59

Virtual Reality Assessment and Treatment of

Hemispatial Neglect .................................... 2-87

Zolpidem and Restoration of Consciousness:

An Exploration of the Mechanism of

Action ......................................................... 2-85

South Carolina

A Longitudinal Study of Risk for

Hospitalization, Pressure Ulcers, and

Subsequent Injuries After Spinal Cord

Injury ........................................................... 2-88

Ambulation and Secondary Complications:

Participants with Chronic Spinal Cord

Injury. .......................................................... 2-91

Center on Health Outcomes Research and

Capacity Building for Underserved

Populations with SCI and TBI ...................... 8-9

Investigating Environmental Factors

Affecting Community Integration ............... 4-39

Participation, Subjective Well-Being,

Health, and Spinal Cord Injury: A 35-Year

Longitudinal Study ...................................... 2-89

Rehabilitation Research and Training

Center on Secondary Conditions in

Individuals with SCI ................................... 2-11

Tennessee

Appropriate Directional Hearing Aid

Switching in School Age Children .............. 3-53

Texas

Advanced Rehabilitation Research

Training ....................................................... 8-39

Developing Strategies to Foster Community

Integration and Participation (CIP) for

Individuals with Traumatic Brain Injury ...... 4-13

Development of an Internet-Based SelfEsteem Intervention for Women with

Disabilities................................................... 4-41

Effectiveness of a Group CognitiveBehavioral Intervention for Depression

after TBI and Factors that Affect Response

to Treatment ................................................ 2-92

Impact of Prospective Payment and

Rehabilitation Outcomes ............................. 5-10

Inpatient Rehabilitation Volume-Outcomes

Relationship ................................................ 8-20

Interdisciplinary Rehabilitation Research

Training Program ........................................ 8-38

Minority Scholar/Champion Research

Training Project ........................................... 8-10

National Center for the Dissemination of

Disability Research (NCDDR) ..................... 6-7

North Texas Burn Rehabilitation Model

System (NTBRMS) .................................... 2-38

North Texas Traumatic Brain Injury Model

System (NT-TBIMS) .................................. 2-39

Outpatient Social Skills Training for

Distressed Adolescent Burn Survivors ........ 4-40

Pediatric Burn Injury Rehabilitation Model

System......................................................... 2-40
Projects by State C-11

SEDL’s Vocational Rehabilitation Service

Models for Individuals with Autism

Spectrum Disorders..................................... 1-19

Southwest Disability and Business Technical

Assistance Center (Southwest DBTACRegion VI) .................................................... 7-9

Texas Model Spinal Cord Injury System..... 2-60

The Texas Traumatic Brain Injury Model

System of TIRR .......................................... 2-41

Utah

New Electro-Hydraulic Foot Prosthesis ...... 3-71

Utility Arm – An Upper Limb Prosthesis.... 2-97

Wireless EMG Preamp and Improved

Mounting System ........................................ 3-83

Virginia

A National Assessment of the Rates and

Correlates of Alcohol and Other Drug Use

by College Students with Disabilities .......... 5-11

Advanced Research Training Program........ 8-40

Advanced Research Training Program in

Neurobehavioral Recovery and

Intervention ................................................. 8-41

Disability and Business Technical Assistance

Centers: Coordination, Outreach, and

Research Center ............................................ 6-8

Empowerment: Building Research

Infrastructure Capacity ................................ 8-11

Rehabilitation Research and Training

Center on Workplace Supports and Job

Retention ..................................................... 1-13

Virginia Commonwealth Traumatic Brain

Injury Model System ................................... 2-42

Vocational Rehabilitation Service Models for

Individuals with Autism Spectrum Disorders

(VCU ASC Career Links) .......................... 1-20

Washington

Assessing the Impact of Medicare-D on

SSDI Beneficiaries...................................... 5-12

Controlled Trial of Venlafaxine XR for

Depression After SCI: A Multisite Study ... 2-45

Disability and Business Technical

Assistance Center (DBTAC) —

Northwest.................................................... 7-13

Model Systems Knowledge Translation

Center (MSKTC) .......................................... 6-9

Multiple Sclerosis Rehabilitation Research

and Training Center ..................................... 2-12

Natural History of Headache Following

Mild Traumatic Brain Injury ........................ 2-94

Northwest Regional Spinal Cord Injury

System......................................................... 2-61

Rehabilitation Research and Training Center

on Aging with a Physical Disability:

Reducing Secondary Conditions and

Enhancing Health and Participation,

Including Employment ................................ 2-13

Telephone and In-Person Cognitive

Behavioral Therapy for Depression After

Traumatic Brain Injury ................................ 2-93

The Effect of Scheduled Telephone

Intervention on Outcomes After Traumatic

 Brain Injury (TBI) ...................................... 2-44

Turning the Corner for Amputee

Rehabilitation: Identifying the Appropriate

Torsional Stiffness to Maximize

Biomechanical Performance ........................ 8-21

University of Washington Advanced

Rehabilitation Research Training ................ 8-42

University of Washington Burn Model

System......................................................... 2-43

University of Washington Burn Model

System......................................................... 2-46

University of Washington Traumatic Brain

Injury Model System ................................... 2-47

West Virginia

Making Small Visual Displays Accessible to

People with Vision Loss.............................. 3-54

Wisconsin

Advanced Rehabilitation Research Training

in Pediatric Mobility .................................... 8-44

Adverse Outcomes Following Inpatient

Rehabilitation: Trends and Reasons ............ 2-95

Clinical Reliability and Validity of a Foot

Model: Assessing Efficacy and Functional

Outcome with Orthotic Intervention in

Children with Cerebral Palsy ...................... 3-56
C-12 Projects by State

Clinician Researchers and Engineers:

Advanced Rehabilitation Research

Training ....................................................... 8-43

Conservative and Surgical Clubfoot

Treatment: Multi-Center Study .................... 2-96

Development of Dynamic Pedorthosis for

Improving Clubfoot Correction ................... 3-55

Rehabilitation Engineering Research Center

for Universal Interface and Information

Technology Access ..................................... 3-24

Rehabilitation Engineering Research Center

on Telecommunication Access .................... 3-22

Rehabilitation Engineering Research Center

on Telecommunications Access .................. 3-25
Principal Investigators

Principal Investigators D-3

Abery, Brian, PhD

University of Minnesota

612/625-5592 ............................................... 2-25

Allen, David, PhD

Portland State University

503/725-4687 ............................................... 4-38

Altman, Barbara

301/460-5963 ............................................... 8-12

Apple, David F., Jr., MD

Shepherd Center, Inc.

404/350-7353 ............................................... 2-51

Arango-Lasprilla, Juan Carlos, PhD

Virginia Commonwealth University

804/827-0914 ............................................... 8-11

Ashman, Theresa, PhD

Mount Sinai School of Medicine

212/241-2549 ............................................... 8-35

Bakke, Matthew H., PhD

Gallaudet University

202/651-5335 (V/TTY) ........................3-6, 3-33

Balcazar, Fabricio E., PhD

University of Illinois at Chicago

312/413-1646 ................................................. 8-5

Barner, Kenneth, PhD

University of Delaware

302/831-6937 ............................................... 3-31

Barrance, Peter, PhD

University of Medicine and Dentistry

of New Jersey/New Jersey Medical

School (UMDNJ/NJMS) and

Kessler Medical Rehabilitation

Research and Education Center

(KMRREC)

973/324-3550 ......................................3-46, 8-33

Belknap, Katherine

ORC Macro

301/608-8998, ext. 105 ................................ 6-12

Bell, Kathleen R., MD

University of Washington

206/685-0935 ............................ 2-44, 2-47, 2-94

Bellini, James L., PhD

Syracuse University

315/443-9655 ............................................... 8-36

Bertocci, Gina, PhD

University of Michigan

734/936-1103 ............................................... 3-13

Beukelman, David, PhD

Duke University

919/684-6271 ............................................... 3-17

Bjelland, Melissa, PhD

Cornell University

607/255-9536 ................................................. 5-5

Blanck, Peter D., PhD, JD

Syracuse University

315/443-9703 .............................. 1-17, 1-18, 7-6

Bodine, Cathy PhD

University of Colorado

303/315-1281 ................................................. 3-5

Bodine, Cathy, PhD

University of Colorado

303/315-1281 ................................................. 3-4

Bogner, Jennifer, PhD

Ohio Valley Center for Brain

Injury Prevention and

Rehabilitation

614/293-3830 ............................................... 2-34

Bombardier, Charles H., PhD

University of Washington

206/731-3665

206/685-3999 ......................................2-45, 2-61

Boninger, Michael L., MD

University of Pittsburgh

412/365-4861 ............................................... 2-59
D-4 Principal Investigators

Boone, Steven E., PhD

University of Arkansas for

Medical Sciences

501/686-7348 ............................................... 1-21

Brabyn, John A., PhD

The Smith-Kettlewell Eye

Research Institute

415/345-2110 ........................................ 3-3, 3-26

Braddock, David L., PhD

University of Colorado Health

Sciences Center

303/492-0639 ................................................. 5-7

Brienza, David M., PhD

University of Pittsburgh

412/586-6907 ............................ 3-18, 3-19, 3-21

Brooks, Marcia

WGBH Educational Foundation

617/300-3431 ............................................... 3-43

Brown, Allen W., MD

Mayo Clinic

507/255-3116 ............................................... 2-26

Brown, Susan H., PhD

University of Michigan

734/763-6755 ............................................... 2-74

Bruyère, Susanne, PhD

Cornell University

607/255-6751 .................................. 1-9, 5-5, 7-4

Burkhauser, Richard, PhD

Cornell University

607/255-9536 .......................................... 1-9, 5-5

Burns, Michael L.

Science, Math and Engineering, Inc.

978/663-9500 ............................................... 3-65

Buxbaum, Laurel, PsyD

Albert Einstein Healthcare

Network

215/456-5953 ............................................... 2-87

Cardoso, Elizabeth, PhD

CUNY Research Foundation

212/772-4736 ................................................. 5-6

Casey, Steve

Aspen Systems, Inc.

508/281-5322 ............................................... 3-66

Cavenaugh, Brenda

Mississippi State University

662/325-3728 ............................ 1-16, 2-49, 2-64

Chaubey, Pravin

OrthoCare Innovations, LLC

405/271-2466 ............................................... 3-70

Chawla, Sunil

Charmtech

408/368-4833 ............................................... 3-57

Chen, David, MD

Rehabilitation Institute of

Chicago

312/238-0764 ............................................... 2-52

Chen, Yuying, MD, PhD

University of Alabama/

Birmingham

205/934-3320 ................................................. 6-3

Cherney, Leora R., PhD

Rehabilitation Institute Research

Corporation

312/238-1117 ...................................... 2-70, 3-37

Chiaravalloti, Nancy D., PhD

University of Medicine and

Dentistry|New Jersey Medical

School

973/530-3640 ............................ 2-29, 2-81, 8-34

Chiarello, Lisa A., PT, PhD

Drexel University

215/762-8805 ............................................... 2-86
Principal Investigators D-5

Cicerone, Keith D., PhD

JFK Johnson Rehabilitation

Institute

732/906-2640 ............................................... 2-28

Clark, Allison, PhD

Memorial Herman

The Institute for Rehabilitation

and Research (TIRR)

713/630-0519 ............................................... 2-92

Cook, Judith A., PhD

University of Illinois at Chicago

312/355-3921 ................................................. 8-3

Copeland, Jana, PhD

Meeting the Challenge, Inc.

719/444-0268 ............................................... 7-11

Corrigan, John D., PhD

Ohio State University

614/293-8879 ......................................2-34, 2-35

Coster, Wendy J., PhD

Boston University

617/353-7518 ............................................... 4-25

Curry, Mary Ann

Oregon Health and Science

University

503/494-8655 ............................................... 4-19

Davies, Daniel

AbleLink Technologies, Inc.

719/592-0347 ......................................3-60, 3-72

Davis, Maryann, PhD

University of Massachusetts

Medical School

508/856-8718 ................................................. 1-6

de Jong, Jim

University of Missouri/Columbia

573/882-3600 (V/TTY) ............................... 7-10

DeRuyter, Frank, PhD

Duke University

919/684-6271 ............................ 3-17, 3-16, 3-28

Dewald, Julius, PT, PhD

Northwestern University

312/908-6788 ............................................... 3-38

Diaz-Arrastia, Ramon R., MD, PhD

The University of Texas Southwestern

Medical Center

214/648-6409 ............................................... 2-39

Dikjers, Marcel, PhD

Mount Sinai School of Medicine

212/659-8587 ............................................... 2-31

Dikman, Suriyya, PhD

University of Washington

206/221-6511 ............................................... 2-94

Ding, Dan, PhD

University of Pittsburgh

412/954-5278 ............................................... 8-37

Donovan, William, MD

The Institute for Rehabilitation and

Research (TIRR)

713/797-5023 ............................................... 2-60

Drum, Charles, PhD

Oregon Health and Science University

503/494-8364 ......................................2-10, 2-36

Duggan, Colette, PhD

Wayne State University

313/745-1070 ............................................... 4-28

Dutta, Alo PhD

Southern University A&M College

225/771-2819 ................................................. 8-7

Dvorkin, Assaf Y., PhD

312/238-5828 ............................................... 8-14

Ehlhardt, Laurie, PhD

Teaching Research Institute

541/346-0572 ............................................... 3-50
D-6 Principal Investigators

Elbogen, Eric, PhD

University of North Carolina at

Chapel Hill

919/966-5540 ............................................... 4-32

Englander, Jeffrey, MD

Santa Clara Valley Medical Center

(SCVMC)

408/793-6446 ...................................... 2-16, 2-62

Engrav, Loren H., MD

University of Washington

206/731-3209 ...................................... 2-43, 2-46

Epps, Irvine E., EdD

Texas Southern University

713/313-7224 ............................................... 8-10

Esselman, Peter C., MD

University of Washington

206/731-3209 ............................................... 2-46

Falco, Ruth, PhD

Portland State University

503/725-4687 ............................................... 4-38

Fann, Jesse R., MD, MPH

University of Washington

206/685-4280 ............................................... 2-93

Farkas, Marianne, ScD

Boston University

617/353-3549 .................................. 1-5, 4-7, 6-4

Fatone, Stefania, PhD, BPO

Northwestern University

312/238-6500 ............................................... 3-12

Fauerbach, James A., PhD

Johns Hopkins School of Medicine

410/550-0894 ............................................... 2-23

Fernie, Geoff

University at Buffalo

The State University of New York

716/829-3485 ............................................... 3-15

Finlayson, Marcia, PhD

University of Illinois at Chicago

312/996-4603 ............................................... 2-71

Fletcher, Valerie

Institute for Human Centered Design

617/695-1225, ext. 226 (V/TTY) .................. 7-3

Flexer, Robert, PhD

Kent State University

330/672-0584 ............................................... 4-36

Foley, Susan, PhD

University of Massachusetts Boston

617/287-4317 ................................................. 1-3

Foulds, Richard A., PhD

New Jersey Institute of Technology

973/596-3335 ............................................... 3-14

Fox, Lynn

Life Technologies, LLC

503/725-3188 ............................................... 3-80

Franzon, Paul D.

North Carolina State University

919/515-7351 ............................................... 3-47

Freed, Geoff

WGBH Educational Foundation

617/300-3700 ............................................... 3-42

Friedman, Robert, PhD

University of South Florida

813/974-4640 ................................................. 4-4

Fried-Oken, Melanie, PhD

Oregon Health and Science University

503/494-7587 ............................................... 3-52

Friesen, Barbara, PhD

Portland State University

503/725-4166 ............................................... 4-10

Fuller, Rebecca

RAF Models & Displays

336/722-4250 ............................................... 3-48
Principal Investigators D-7

Gans, Bruce M., MD

Kessler Foundation Research Center

973/324-3658 ............................................... 2-29

Gard, Steven, PhD

Northwestern University

312/238-6500 ............................................... 3-12

Gerber, Brian J. PhD

Louisiana State University

225/578-0238 ............................................... 4-15

Giacino, Joseph T., PhD

JFK Johnson Rehabilitation Institute

732/205-1461 ............................................... 2-27

Gill, Kenneth J., PhD

University of Medicine and Dentistry

of New Jersey

908/889-2438 ............................................... 8-32

Glaister, Brian C.

414/807-7399 ............................................... 8-21

Glang, Ann E., PhD

Western Oregon University

541/346-0594 ............................................... 4-18

Gordon, Wayne A., PhD

Mount Sinai School of Medicine

212/659-9372 ........................................2-8, 2-30

Graham, James E., PhD

409/747-1634 ............................................... 8-20

Graves, Daniel, PhD

The Institute for Rehabilitation and

Research (TIRR)

713/797-5023 ............................................... 2-60

Grigal, Meg, PhD

University of Massachusetts Boston

617/590-8082 ............................................... 4-16

Groah, Suzanne L., MD

National Rehabilitation Hospital

MedStar Research Institute

202/877-1196 ................................ 2-5, 2-6, 2-50

Hammond, Flora M., MD

Carolinas HealthCare System

704/355-4330 ......................................2-32, 2-33

Hanks, Robin A., PhD

Wayne State University

313/745-9763 ............................................... 2-24

Hanks, Robin A., PhD

Wayne State University

313/745-9763 ............................................... 2-77

Harkins, Judy, PhD

Gallaudet University

202/561-5257 ......................................3-22, 3-25

Harrington, Charlene, PhD, RN

University of California,

San Francisco

415/476-4030 ................................................. 4-3

Harris, Gerald F., PhD, PE

Marquette University

414/288-0696 ............................ 2-96, 8-43, 8-44

Harrison-Felix, Cynthia, PhD

Craig Hospital

303/789-8565 ............................................... 2-19

Hart, Debra, PhD

University of Massachusetts

Boston

617/590-8082 ............................................... 4-16

Hart, Tessa, PhD

Albert Einstein Healthcare

Network

215/663-6153 ......................................2-37, 2-84

Hassouneh, Dena, PhD

Oregon Health and Science

University

503/494-2714 ............................................... 2-83
D-8 Principal Investigators

Havey, Gary D.

Advanced Medical

Electronics Corporation

763/463-4814 ...................................... 3-67, 3-77

Heinemann, Allen W., PhD

Feinberg School of Medicine

312/238-2802 ....................... 5-3, 5-4, 8-22, 8-25

Heitzman-Powell,

Linda S., PhD

University of Kansas

913/321-3143 ...................................... 3-34, 4-22

Helfrich, Christine A., PhD

College of Health &

Rehabilitation Sciences:

Sargent

College

617/353-8947 ...................................... 4-21, 4-26

Heller, Tamar, PhD

University of Illinois at

Chicago

312/413-1647 ................................................. 4-5

Herndon, David, MD

University of Texas Medical

Branch

409/770-6731 ............................................... 2-40

Hoffman, Jeanne M., PhD

University of Washington

206/221-6511 ............................................... 2-94

Hornby, T. George, PhD, PT

Rehabilitation Institute of

Chicago

312/238-1397 ............................................... 2-69

Hornyak, Joseph, MD

University of Michigan

734/615-1904 ............................................... 4-27

Hotz, Gillian A., PhD

University of Miami

305/243-4004 ............................................... 2-65

Hudson, Lesley M.

Shepherd Center, Inc.

404/350-7353 ............................................... 2-51

Huggins, Jane, PhD

University of Michigan

734/936-7170 ............................................... 3-45

Hughes, Rosemary, PhD

University of Montana

406/243-2898 ............................................... 4-29

Hunter-Zaworski,

Katharine, PhD

Oregon State University

541/737-4982 ............................................... 3-49

Hurdich, Jason C.

VCom3D, Inc.

407/737-7310 ...................................... 3-61, 3-73

Iglehart, Frank, PhD

Clarke School for the Deaf

413/584-3450 ............................................... 3-44

Jackson, Amie B., MD

University of Alabama/

Birmingham

205/934-3330 ............................................... 2-48

Jensen, Mark P. PhD

University of Washington

206/543-3185 ............................................... 2-13

Jette, Alan M., PhD

Boston University Medical

Campus

617/638-1985 ............................................... 8-26

Johnson, Kurt, PhD

University of Washington

206/543-3677 ........................................ 6-9, 8-42

Johnston, Mark, PhD

University of Wisconsin/

Milwaukee

414/229-3616 ............................................... 2-95
Principal Investigators D-9

Jones, Erica C., MPH

Public Health Institute

510/285-5600 (V/TTY) ............................... 7-12

Jones, Michael L., PhD

Shepherd Center, Inc.

404/350-7595 ............................................... 2-68

Jones, Robin A.

University of Illinois at Chicago

312/996-1059 ................................................. 7-7

Kalpakjian, Claire PhD

University of Michigan

734/763-0971 ............................................... 2-76

Kaplan, Shelley

404/541-9001 ................................................. 7-6

Karg, Patricia, MS

University of Michigan

734/936-1103 ............................................... 3-13

Kartin, Deborah, PT PhD

University of Washington

206/598-5338 ............................................... 8-42

Katz, Harry, PhD

Cornell University

607/255-9536 ................................................. 5-5

Kaye, Stephen H., PhD

University of California, San

Francisco

415/476-4030 ................................................. 4-3

Keating, Thomas, PhD

Assistech Systems, LLC

541/342-3763 ............................................... 4-42

Kennedy, James J., PhD

Washington State University

509/368-6971 ............................................... 5-12

Kielhofner, Gary, PhD

University of Illinois at Chicago

312/996-4973 ............................................... 8-24

Kiernan, William E. PhD

University of

Massachusetts Boston

617/287-4311 ............................................... 1-15

Kirshbaum, Megan, PhD

Through the Looking Glass

510/848-1112 (V) ......................................... 4-14

Kloos, Bret, PhD

University of South Carolina

803/777-2704 ............................................... 4-39

Koroloff, Nancy M.

Portland State University

503/725-9675 ............................................... 4-11

Kowalske, Karen

The University of Texas

Southwestern Medical

Center

214/648-2288 ............................................... 2-38

Kraft, George H., MD

University of Washington

206/543-7272 ............................................... 2-12

Krause, James S. PhD

Medical University of

South Carolina

843/792-1337 ............ 2-11, 2-88, 2-89, 2-91, 8-9

Kreutzer, Jeffrey S., PhD

Virginia Commonwealth

University

804/828-9055 ............................ 2-42, 8-40, 8-41

Lakin, Charlie, PhD

University of Minnesota

612/624-5005 ..........................................4-9, 5-9

Lammertse, Daniel P., MD

Craig Hospital

303/789-8220 ............................................... 2-49

Landau, Steven

Touch Graphics, Inc.

212/375-6341 ............................................... 3-78
D-10 Principal Investigators

Lane, Joseph

University at Buffalo

The State University of New York

716/204-8606, x211 ....................................... 6-5

LaPlante, Mitch, PhD

University of California, San Francisco

415/476-4030 ................................................. 4-3

Lawson, William, MD, PhD

Dartmouth College

202/865-6611 ................................................. 8-8

Lee, Sang Wook, PhD

312/238-6822 ............................................... 8-17

Lemoncello, Richard

Life Technologies, LLC

541/915-8472 ............................................... 3-81

Levy, Robert M.

Criterion Health, Inc.

812/894-2120 ............................................... 3-64

Lewis, Allen, PhD

Virginia Commonwealth University

804/827-0914 ............................................... 8-11

Lezotte, Dennis C., PhD

University of Colorado Denver -

Anschutz Medical Campus

303/724-4388 ............................................... 2-17

Lichter, Patrick A.

Koronis Biomedical Technologies

Corporation

612/730-1091 ............................................... 3-68

Liu, Xue-Cheng, PhD

Medical College of Wisconsin

414/337-7323 ...................................... 3-55, 3-56

Lueking, Richard G., PhD

TransCen, Inc.

301/424-2002 ................................................. 7-5

Madhavan, Sangeetha, PhD

352/262-2569 ............................................... 8-16

Maguire, Amy

The Sandbox Learning Company

800/704-7815 ............................................... 4-33

Manning, Sarah

Learnimation, LLC

212/361-3706 ............................................... 3-69

Marino, J. Ralph, MD

Thomas Jefferson University

215/955-6579 ............................................... 2-58

Matrone, Kathe, PhD

University of Washington

425/771-7436 ............................................... 7-13

May, Michael

Sendero Group, LLC

530/757-6800 ............................................... 3-58

McCann, William

Dancing Dots Braille Music

Technology, L.P.

610/783-6692 ............................................... 3-82

McCue, Michael, PhD

University of Pittsburgh

412/383-6589 ............................................... 3-21

McDonald, Craig, MD

University of California, Davis

530/752-3447 .......................................... 2-3, 2-4

McGurk, Susan, PhD

Dartmouth College

603/271-5747 ...................................... 1-22, 1-23

McMahon. Brian T. PhD

Virginia Commonwealth University

804/827-0917 ................................................. 6-8

Milchus, Karen

Georgia Institute of Technology

Center for Assistive Technology and

Environmental Access (CATEA)

404/894-0393 ........................................ 3-8, 3-36
Principal Investigators D-11

Miller, Nancy, PhD

University of Maryland/Baltimore County

410/455-3889 ................................................. 5-8

Mitchell, Helena, PhD

Georgia Institute of Technology

404/367-1288 ................................................. 3-7

Molton, Ivan, PhD

University of Washington

206/543-3185 ............................................... 2-13

Moore, Dennis C., EdD

Wright State University

937/775-1484 (V/TTY) ............................... 1-12

Morris, Michael

Syracuse University

202/296-2046 ............................................... 4-17

Munson, Leslie J., PhD

Portland State University

503/725-4687 ............................................... 4-38

Nash, Mark S., PhD

University of Miami

305/243-3628 ............................................... 2-66

Nemunaitis, Gregory A., MD

MetroHealth System

216/778-5514 ............................................... 2-57

Newcomer, Robert, PhD

University of California, San Francisco

415/476-4030 ................................................. 4-3

Nosek, Margaret A., PhD

Baylor College of Medicine

713/523-0909 ............................................... 4-41

Novack, Thomas A., PhD

University of Alabama/Birmingham

205/934-3283 ............................................... 2-15

Odum, Mark X.

HeiTech Services, Inc.

301/459-5900 ............................................... 6-11

O’Neill, John, PhD

Hunter College of CUNY

212/772-5188 ........................................ 1-11, 5-6

Oschwald, Mary, PhD

Portland State University

503/725-9602 ............................................... 4-37

Ottenbacher, Kenneth J., PhD

University of Texas Medical Branch

409/747-1637 ......................................5-10, 8-38

Palfrey, Judith S., MD

Children’s Hospital

617/355-4661 ................................................. 4-8

Palsbo, Susan

Obslap, Inc.

541/505-7591 ............................................... 3-79

Papadimitriou, Christina, PhD

312/238-4856 ............................................... 8-18

Parish, Susan, PhD

University of North Carolina

919/962-6434 ............................................... 2-82

Parker, Jerry C., PhD

University of Missouri/Columbia

573/884-0042 ............................................... 8-31

Parmanto, Bambang, PhD

University of Pittsburgh

412/383-6649 ............................................... 3-29

Patton, Jim, PhD

Rehabilitation Institute Research

Corporation

312/238-3919 ............................................... 3-11

Perry, Jennifer L.

University of Texas Medical Branch

409/770-6718 ............................................... 4-40

Pollard, Robert, PhD

University of Rochester School of

Medicine

585/275-3544 ............................................... 4-31
D-12 Principal Investigators

Preston, Paul, PhD

Through the Looking Glass

510/848-1112 (V) ......................................... 4-14

Ragnarsson, Kristian T., MD

Mount Sinai School of

Medicine

212/659-8587 ............................................... 2-56

Reichard, Amanda, PhD

University of Kansas

785/864-1618 ............................................... 2-73

Reinkensmeyer, David J., PhD

University of California

949/824-5218 ............................................... 3-30

Reisinger, Kim, PhD

San Francisco State University

415/338-6277 ............................................... 3-27

Ren, Yupeng

RehabTek, LLC

847/024-1659 ............................................... 3-74

Requejo, Philip, PhD

University of Southern California

323/442-2903 ............................................... 2-14

Ricketts, Todd A., PhD

Vanderbilt University School

of Medicine

615/936-5258 ............................................... 3-53

Rimmer, James H., PhD

University of Illinois at

Chicago

312/413-9651 ...................................... 2-21, 3-10

Ristova-Trendov, Daniela, MD

Wayne State University

313/745-1070 ............................................... 4-28

Rogers, E. Sally, ScD

Boston University

617/353-3549 ....................... 1-5, 4-7, 4-24, 8-27

Roth, Elliot J., MD

Rehabilitation Institute Research

Corporation

312/238-4637 ........................................ 2-7, 2-22

Rowland, Charity, PhD

Oregon Health and Science University

503/494-2263 ...................................... 3-51, 3-52

Rowland, Jennifer

University of Illinois at Chicago

312/413-1850 ............................................... 3-39

Russinova, Zlatka, PhD

Boston University

617/353-3549 ............................................... 8-27

Rymer, W. Zev, MD, PhD

Northwestern University

312/238-6051 ...................................... 3-11, 8-23

Salzer, Mark, PhD

University of Pennsylvania

215/349-8483 ............................................... 4-12

Samuel, Preethy, PhD

313/577-8562 ............................................... 8-19

Sander, Angelle M., PhD

The Institute for Rehabilitation and

Research (TIRR)

713/630-0516 ...................................... 4-13, 8-39

Saunders, Muriel D., PhD

University of Kansas

785/864-1618 ............................................... 2-73

Schlosser, Ralf W., PhD

Northeastern University

617/373-3785 ............................................... 6-10

Schneider, Lawrence W., PhD

University of Michigan

734/936-1103 ............................................... 3-13

Sears, Andrew, PhD

UMBC

410/455-3883 ............................................... 3-41
Principal Investigators D-13

Sears, Harold H. PhD

Motion Control, Inc.

801/326-3434 ............................ 2-97, 3-71, 3-83

Seekins, Tom, PhD

University of Montana

406/243-2654 ..........................................1-7, 1-8

Seel, Ronald T., Ph.D.

Shepherd Center, Inc.

404/367-1240 ......................................2-67, 4-20

Seifert, Greg

Advanced Medical Electronics

Corporation

763/463-4814 ............................................... 3-76

Sheffield, Ellyn, PhD

National Public Radio

202/513-2484 ............................................... 3-34

Shem, Kazuko, MD

Santa Clara Valley Medical

Center (SCVMC)

408/885-7007 ............................................... 2-63

Sherer, Mark, PhD

The Institute for Rehabilitation

and Research (TIRR)

713/799-7007 ............................................... 2-41

Smith, Peter A, MD

Marquette University

414/288-0696 ............................................... 2-96

Sprigle, Stephen, PhD, PT

Georgia Institute of Technology

404/385-4302 ................................................. 3-9

Stapleton, David, PhD

Cornell University

607/255-9536 ................................................. 1-9

Starling, Mike

National Public Radio

202/513-2484 ............................ 3-32, 3-35, 3-34

Steinfeld, Aaron, PhD

Carnegie Mellon University

412/268-6346 ............................................... 3-20

Steinfeld, Edward, ArchD

University at Buffalo

The State University of New York

716/829-3485 ......................................3-15, 3-20

Stergiou, Nicholas

University of Nebraska at Omaha

402/554-3247 ............................................... 2-79

Stock, Steven E.

AbleLink Technologies, Inc.

719/592-0347 ............................................... 3-59

Stone, John, PhD

University at Buffalo

The State University of New York

716/829-3141, ext. 125 .................................. 6-6

Struchen, Margaret, PhD

Memorial Herman

The Institute for Rehabilitation

and Research (TIRR)

713/630-0515 713/630-0519 ........................ 2-92

Sundarrao, Stephen

Rehabilitation Ideas-Wheelchair

Products and Accessories, Inc.

813/600-3058 ............................................... 3-62

Sutter, Stephen M.

CreateAbility Concepts, Inc.

317/484-8400 ......................................3-63, 3-75

Tan, Faye C., MD

Baylor College of Medicine

713/873-3875 ............................................... 8-39

Tate, Denise G., PhD

University of Michigan

734/763-0971 ............................ 2-54, 8-28, 8-29
D-14 Principal Investigators

Tomita, Machiko, PhD

University at Buffalo

The State University of New York

716/829-2300 ............................................... 4-30

Tulsky, David S., PhD

Kessler Medical Rehabilitation

Research and Education

Corporation (KMRREC)

973/243-6849 ...................................... 2-55, 2-80

Ulrich, Dale, PhD

University of Michigan

734/615-1904 ............................................... 4-27

Uslan, Mark

American Foundation for the

Blind

304/523-8651 ............................................... 3-54

VanBiervliet, Alan, PhD

University of Arkansas for

Medical Sciences

501/686-7348 ............................................... 1-21

Vanderheiden, Gregg C., PhD

University of Wisconsin/Madison

608/263-5788 ............................ 3-22, 3-24, 3-25

Wade, Shari L., PhD

Children’s Hospital Medical

Center

513/636-7480 .............................. 2-9, 4-34, 4-35

Warschausky, Seth A., PhD

University of Michigan

734/936-7052 ............................................... 2-75

Watson, Douglas, PhD

University of Arkansas

501/686-9691 ............................................... 1-14

Wehman, Paul, PhD

Virginia Commonwealth

University

804/828-1851 ............................. 1-13, 1-20, 8-11

West, Steven L., PhD, CRC

Virginia Commonwealth University

804/827-0921 ............................................... 5-11

Westbrook, John, PhD

SEDL

800/266-1832 (V/TTY) ........................ 1-19, 6-7

White, Glen W., PhD

University of Kansas

785/864-4095 ........................................ 4-6, 4-23

Whiteneck, Gale G., PhD

Craig Hospital

303/789-8204 ...................................... 2-18, 2-20

Whitley, Rob PhD

Dartmouth College

603/448-0263 ................................................. 8-8

Whyte, John, MD, PhD

Albert Einstein Healthcare Network

215/663-6872 ............................................... 2-85

Wilkinson, Wendy

The Institute for Rehabilitation and

Research (TIRR)

713/520-0232 ................................................. 7-9

Willer, Barry S., PhD

University at Buffalo

The State University of New York

716/829-2300 ............................................... 4-30

Williams, Steve, MD

Boston University Medical Center

617/638-7316 2-53

Winstein, Carolee J., PhD, PT

University of Southern California

323/442-2903 ............................................... 2-14

Wong, Yin Ling Irene, PhD

215/898-5505 ............................................... 8-13

Wu, Yi-Ning, PhD

312/238-4296 ............................................... 8-15
Principal Investigators D-15

Zhou, Ping, PhD

Rehabilitation Institute of Chicago

312/238-1365 ............................................... 2-72

Zollman, Felise, MD

Rehabilitation Institute Research Corporation

312/238-4637 ............................................... 2-22

Projects by Program Type

E- 3 Projects by Program Type

ADA Technical Assistance Projects

DBTAC - Great Plains ADA Center -

Region VII H133A060089 ......................... 7-10

DBTAC Rocky Mountain ADA Center -

Region VIII H133A060079 ........................ 7-11

DBTAC: Great Lakes ADA Center

H133A060097 .............................................. 7-7

DBTAC: Mid-Atlantic ADA Center

H133A060085 .............................................. 7-5

DBTAC: Southeast ADA Center - Region

IV H133A060094 ......................................... 7-6

DBTAC-New England ADA Center -

Region I H133A060092 ............................... 7-3

Disability and Business Technical Assistance

Center - Northeast H133A060088 ................ 7-4

Disability and Business Technical Assistance

Center (DBTAC) — Northwest

H133A070048 ............................................ 7-13

Disability and Business Technical Assistance

Center (DBTAC) — Pacific ADA Center

H133A060098 ............................................ 7-12

Southwest Disability and Business Technical

Assistance Center (Southwest DBTACRegion VI) H133A060091 ........................... 7-9

Advanced Rehabilitation Research Training

Projects

Advanced Psychiatric Rehabilitation

Research on Employment and Community

Integration H133P050006 ........................... 8-32

Advanced Rehabilitation Research and

Disability Policy Training Center

H133P070004 ............................................. 8-36

Advanced Rehabilitation Research Training

H133P080007 ............................................. 8-39

Advanced Rehabilitation Research Training

Center on Neurocognitive Rehabilitation

H133P090009 ............................................. 8-34

Advanced Rehabilitation Research Training

Center on Neuro-musculoskeletal

Rehabilitation H133P070007 ...................... 8-33

Advanced Rehabilitation Research Training

in Pediatric Mobility H133P080005 ............ 8-44

Advanced Rehabilitation Research Training

Program H133P050004 .............................. 8-35

Advanced Rehabilitation Research Training

Project in Rehabilitation Services Research

H133P030002 ............................................. 8-22

Advanced Rehabilitation Research Training

Project in Rehabilitation Services Research

H133P080006 ............................................. 8-25

Advanced Research Training Program

H133P040006 ............................................. 8-40

Advanced Research Training Program in

Neurobehavioral Recovery and Intervention

H133P090013 ............................................. 8-41

Advanced Research Training Program in

Psychiatric Rehabilitation H133P070001 .... 8-27

Advanced Training in Translational and

Transformational Research to Improve

Vocational Outcomes for Persons with

Disabilities H133P060003 .......................... 8-24

Career Advancement for Engineers in the

Science of Rehabilitation (CAESOR)

H133P090010 ............................................. 8-37

Clinician Researchers and Engineers:

Advanced Rehabilitation Research Training

H133P040008 ............................................. 8-43

Health Activity Rehabilitation Research

Training Center (HARRTC)

H133P050005 ............................................. 8-31

Interdisciplinary Rehabilitation Research

Training Program H133P040003 ................ 8-38

Post-Doctoral Fellowship in Rehabilitation

Outcomes and Effective Research

H133P050001 ............................................. 8-26

Rehabilitation Science for Basic Scientists

and Engineers: An Advanced Training

Program H133P040007 .............................. 8-23

The UMHS/AACIL Rehabilitation Research

Training Program H133P030004 ................ 8-28

The UMHS/AACIL Rehabilitation Research

Training Program H133P090008 ................ 8-29

University of Washington Advanced

Rehabilitation Research Training

H133P080008 ............................................. 8-42

Disability and Rehabilitation Research

Projects

A Center on Postsecondary Education for

Students with Intellectual Disabilities

H133A080042 ............................................ 4-16
E-4 Projects by Program Type

A Multicenter Prospective Randomized

Controlled Trial of the Effectiveness of

Amantadine Hydrochloride in Promoting

Recovery of Function Following Severe

Traumatic Brain Injury H133A031713 ....... 2-27

Asset Accumulation and Economic SelfSufficiency (AAESS) H133A080014 ......... 4-17

Building Knowledge and Capacity in the

Rehabilitation and Recovery of AfricanAmericans Suffering from Severe Mental

Illness: The Dartmouth-Howard

Collaboration. H133A080063 ....................... 8-8

Carolinas Traumatic Brain Injury

Rehabilitation and Research System

(CTBIRRS) H133A070042 ........................ 2-32

Center for International Rehabilitation

Research Information and Exchange

(CIRRIE-2) H133A050008 .......................... 6-6

Center for Strategic Capacity Building on

Minorities with Disabilities Research

H133A040007 .............................................. 8-5

Center on Effective Delivery of

Rehabilitation Technology by Vocational

Rehabilitation Agencies H133A090004 ..... 1-18

Center on Health Outcomes Research and

Capacity Building for Underserved

Populations with SCI and TBI

H133A080064 .............................................. 8-9

Center on Knowledge Translation for

Technology Transfer H133A080050 ............ 6-5

Classification and Measurement of Medical

Rehabilitation Interventions

H133A080053 ............................................ 2-31

Collaborative Spinal Cord Injury Model

Systems Centers Program: Improving

Spinal Cord Injury Rehabilitation Outcomes

H133A060103 ............................................ 2-18

Consortium for Assistive Technology

Outcomes Research (CATOR) II

H133A060062 ............................................ 3-28

Controlled Trial of Venlafaxine XR for

Depression After SCI: A Multisite Study

H133A060107 ............................................ 2-45

Demand-Side Employment Placement

Models H133A060033 ............................... 1-17

Disability and Business Technical

Assistance Centers: Coordination,

Outreach, and Research Center

H133A060087 .............................................. 6-8

Empowerment: Building Research

Infrastructure Capacity H133A080060 ....... 8-11

Evacuation Methodology and

Understanding Behavior of Persons with

Disabilities in Disasters: A Blueprint for

Emergency Planning Solutions

H133A080069 ............................................ 4-15

Fundamental Issues in Wayfinding

Technologies H133A060056 ...................... 3-26

Health and Health Care Disparities Among

Individuals with Disabilities

H133A080031 ............................................ 2-36

Health Care Coordination for Individuals

with Physical Disabilities: Critical Elements

and Consumer Outcomes H133A080049 ... 2-25

Identification and Reporting of Violence by

People with Disabilities H133A031724 ...... 4-19

Improve the Employment Outcomes for the

Low Functioning Deaf (LFD) Population

H133A060044 ............................................ 1-14

Individualized Planning for the First Year

Following Acute Rehabilitation Project

H133A080023 ............................................ 2-35

Information Technology for Independence:

Community-Based Research

H133A021916 ............................................ 3-29

Innovative Knowledge Dissemination and

Utilization for Disability and Professional

Organizations and Stakeholders

H133A050006 .............................................. 6-4

JFK-Johnson Rehabilitation Institute TBI

Model System H133A070030 .................... 2-28

Johns Hopkins University Burn Injury

Rehabilitation Model System (JHU-BIRMS)

H133A070045 ............................................ 2-23

Mayo Clinic Traumatic Brain Injury Model

System H133A070013 ................................ 2-26

Michigan Traumatic Brain Injury Model

System (SEMTBIS) H133A080044 ........... 2-24

Midwest Regional Traumatic Brain Injury

Model System: Innovative Approaches to

Improve Cognition, Function, and

Community Living H133A080045 ............. 2-22

Minority Scholar/Champion Research

Training Project H133A031704 .................. 8-10
E- 5 Projects by Program Type

Model Systems Knowledge Translation

Center (MSKTC) H133A060070 ................. 6-9

National Center for Parents with Disabilities

and Their Families H133A080034 .............. 4-14

National Center for the Dissemination of

Disability Research (NCDDR)

H133A060028 .............................................. 6-7

National Spinal Cord Injury Statistical

Center (NSCISC) H133A060039 ................. 6-3

New York Traumatic Brain Injury Model

System (NYTBIMS) H133A070033 .......... 2-30

North Texas Burn Rehabilitation Model

System (NTBRMS) H133A070024 ........... 2-38

North Texas Traumatic Brain Injury Model

System (NT-TBIMS) H133A070027 ......... 2-39

Northern California Traumatic Brain Injury

Model System of Care H133A070038 ........ 2-16

Northern New Jersey Traumatic Brain Injury

System (NNJTBIS) H133A070037 ............ 2-29

Ohio Regional TBI Model System

H133A070029 ............................................ 2-34

Pediatric Burn Injury Rehabilitation Model

System H133A070026 ................................ 2-40

Reducing Obesity and Obesity-Related

Secondary Conditions in Adolescents with

Disabilities H133A060066 .......................... 2-21

Rehabilitation Research Institute for

Underrepresented Populations (RRIUP)

H133A031705 .............................................. 8-7

Research and Technical Assistance Center

on Vocational Rehabilitation Program

Management H133A090002 ....................... 1-15

School Transition & re-Entry Program

(STEP): Systematic Hospital-to-School

Transition for Students with Traumatic Brain

Injury H133A060075 .................................. 4-18

SEDL’s Vocational Rehabilitation Service

Models for Individuals with Autism

Spectrum Disorders H133A080007 ............ 1-19

TBI Model System Collaborative Study of

Amantadine for Post TBI Irritability and

Aggression H133A080035 ......................... 2-33

Technology Access in Resource-Limited

Environments H133A090020 ..................... 3-27

The Effect of Scheduled Telephone

Intervention on Outcomes After Traumatic

Brain Injury (TBI) H133A040004 .............. 2-44

The Moss Traumatic Brain Injury Model

System H133A070040 ................................ 2-37

The National Data and Statistical Center for

the Traumatic Brain Injury Model Systems

H133A060038 ............................................ 2-19

The Rocky Mountain Regional Brain Injury

System (RMRBIS) H133A070022 ............. 2-20

The Texas Traumatic Brain Injury Model

System of TIRR H133A070043 ................. 2-41

UCHSC Burn Model System Data

Coordination Center (BMS/DCC)

H133A070006 ............................................ 2-17

University of Alabama at Birmingham

(UAB) Traumatic Brain Injury Model

System (UAB TBIMS) H133A070039 ...... 2-15

University of Washington Burn Model

System H133A020103 ................................ 2-43

University of Washington Burn Model

System H133A070047 ................................ 2-46

University of Washington Traumatic Brain

Injury Model System H133A070032 .......... 2-47

Virginia Commonwealth Traumatic Brain

Injury Model System H133A070036 .......... 2-42

Vocational Rehabilitation Service Models for

Individuals with Autism Spectrum Disorders

(VCU ASC Career Links)

H133A080027 ............................................ 1-20

Vocational Rehabilitation: Transition

Services that Lead to Competitive

Employment Outcomes for Transition-Age

Individuals with Blindness or Other Visual

Impairments H133A070001 ........................ 1-16

Fellowships (Distinguished)

Cross-Disability Study of CRS

H133F090035 ............................................. 8-13

Demographic Soup: Disentangling the

Conceptual, Political, and Methodological

Dimensions of Disability Statistics

H133F060011 ............................................. 8-12

Fellowships (Merit)

Client-Centered Practices in Spinal Cord

Injury (SCI) Rehabilitation H133F090053 .. 8-18

Does the Non-Lesioned Hemisphere

Influence Paretic Lower Limb Motor
E-6 Projects by Program Type

Function Following Stroke?

H133F090009 ............................................. 8-16

Inpatient Rehabilitation Volume-Outcomes

Relationship H133F090030 ........................ 8-20

Psychometric Evaluation of the Family

Quality of Life Survey for Minority Families

H133F080024 ............................................. 8-19

Subject-Specific EMG Pattern

Classification to Promote Hand

Rehabilitation in Stroke Survivors

H133F090018 ............................................. 8-17

The Effectiveness of Intelligent-Stretching

Followed by Active Movement in Children

with Cerebral Palsy H133F090042 ............. 8-15

Turning the Corner for Amputee

Rehabilitation: Identifying the Appropriate

Torsional Stiffness to Maximize

Biomechanical Performance

H133F090050 ............................................. 8-21

Virtual Reality-Based Assessment Tool for

Spatial Neglect Following Stroke

H133F080010 ............................................. 8-14

Field Initiated Projects (FIPs)

A Longitudinal Study of Risk for

Hospitalization, Pressure Ulcers, and

Subsequent Injuries After Spinal Cord

Injury H133G050165 .................................. 2-88

A Means of Expression: Online

Communication Assessment to Improve

Outcomes for Individuals with Severe

Disabilities H133G070129 .......................... 3-51

A National Assessment of the Rates and

Correlates of Alcohol and Other Drug Use

by College Students with Disabilities

H133G080123 ............................................ 5-11

A New Measure of Subjective Fatigue in

Persons with Traumatic Brain Injury

H133G080168 ............................................ 2-62

A Robotic Powered Wheelchair Trainer

with Haptic Guidance as Needed

H133G090111............................................. 3-30

Accessible Digital Radio Broadcast Services

H133G060187 ............................................ 3-32

Accommodations and ADA for PostSecondary Students with Disabilities

H133G090222 ............................................ 4-23

Adapted Assessment of Speed of

Information Processing in Children with

Cerebral Palsy H133G070044 .................... 2-75

Adverse Outcomes Following Inpatient

Rehabilitation: Trends and Reasons

H133G060218 ............................................ 2-95

Ambulation and Secondary Complications:

Participants with Chronic Spinal Cord

Injury. H133G090059 ................................. 2-91

An Automatic Fitting Algorithm for

Cochlear Implant H133G060065 ................ 3-33

Appropriate Directional Hearing Aid

Switching in School Age Children

H133G060012 ............................................ 3-53

Assessing Safety Risk after Traumatic Brain

Injury H133G080153 .................................. 4-20

Assessing the Impact of Medicare-D on

SSDI Beneficiaries H133G070055 ............. 5-12

Augmenting Language Therapy for

Aphasia: A Randomized Double-Blind

Placebo-Controlled Trial of Levodopa in

Combination with Speech-Language

Therapy H133G070074 .............................. 2-70

Beyond Hearing Aids: Training Resources

to Improve the Capacity of VR Professionals

Serving Consumers who are Hard of

Hearing and Late Deafened

H133G090170 ............................................ 1-21

Biopsychosocial Factors that Predict TBI

Post-Acute Rehabilitation Outcomes

H133G070171 ............................................ 2-67

Caption Accuracy Metrics Development

Project H133G080093 ................................ 3-43

Captioning Solutions for Handheld Media

and Mobile Devices Development

H133G070122 ............................................ 3-42

CIL-Based Abuse Education and Safety

Planning Program for Women with

Disabilities H133G070196 .......................... 4-29

Clinical Reliability and Validity of a Foot

Model: Assessing Efficacy and Functional

Outcome with Orthotic Intervention in

Children with Cerebral Palsy

H133G060155 ............................................ 3-56

Cognitive Remediation, Illness SelfManagement, and Supported Employment

in Severe Mental Illness H133G090206 ..... 1-23
E- 7 Projects by Program Type

Cognitive Training and Supported

Employment in Severe Mental Illness

H133G050230 ............................................ 1-22

Combining Technologies to Maximize

Outcomes: Telemedicine and Online

Training Program for Parents of Children

with Autism H133G060238 ........................ 4-22

Conservative and Surgical Clubfoot

Treatment: Multi-Center Study

H133G060252 ............................................ 2-96

Controlled Study of Affect Recognition

Training for Individuals with Traumatic

Brain Injury H133G080043 ........................ 4-30

Daily Living and Community Skills Video

Game for Children with Developmental

Disabilities H133G080151 .......................... 4-33

Developing a Relevant Instrument to Assess

Caregiver Distress and Benefit in Spinal

Cord Injury H133G090013 ......................... 2-64

Developing College Campuses as Transition

Settings for Students with Severe and

Multiple Disabilities Aged 18-21

H133G080158 ............................................ 4-36

Development and Use of a Multi-State

Database on Individual Outcomes and their

Predictors for Persons with Intellectual and

Developmental Disabilities in the US

H133G080029 .............................................. 5-9

Development of a Safety-Planning Tool for

Men with Disabilities H133G070190 ......... 4-37

Development of an Intelligently Controlled

Assistive Rehabilitation Elliptical (ICARE)

Training System to Promote Walking and

Fitness in Persons with Physical Limitations

H133G070209 ............................................ 2-78

Development of an Internet-Based SelfEsteem Intervention for Women with

Disabilities H133G080042 .......................... 4-41

Development of Dynamic Pedorthosis for

Improving Clubfoot Correction

H133G060142 ............................................ 3-55

Development of Measures of Participation

and Environment for Children with

Disabilities H133G070140 .......................... 4-25

Direct vs. Interpreted Administration of the

SPAT H133G090189 .................................. 4-31

Effectiveness of a Group CognitiveBehavioral Intervention for Depression after

TBI and Factors that Affect Response to

Treatment H133G070222 ........................... 2-92

Effectiveness of a Teleconference Fatigue

Management Program for People with

Multiple Sclerosis H133G070006 ............... 2-71

Enhanced Motor Recovery Using

Serotonergic Agents H133G060124 ........... 2-69

Evaluating Dysphagia in Individuals with

Spinal Cord Injury: Assessing Incidence,

Associated Factors, and Preventable

Complications H133G080165 .................... 2-63

Evaluating the Effects of Activity-Based

Therapy for Individuals with Chronic

Spinal Cord Injury H133G080031 .............. 2-68

EVIDAAC: A Database of Appraised

Evidence in Augmentative and Alternative

Communication H133G070150 .................. 6-10

Exercise Treatment of Obesity-Related

Secondary Conditions in Adults with

Paraplegia H133G080150 ........................... 2-66

Experimental Evaluation of the Online and

Applied System for Intervention Skills

(OASIS) Training Program Using VideoConferencing for Parents of Children with

an Autism Spectrum Disorder

H133G090136 ............................................ 3-34

Health Care Disparities in Access and

Utilization among Individuals with

Disabilities H133G090133 ............................ 5-8

Homeless Mentally Ill: Strategies for

Maintaining Residential Stability

H133G060180 ............................................ 4-21

Impact of Prospective Payment and

Rehabilitation Outcomes H133G080163 .... 5-10

Improved Weight Bearing Evaluation of

Knee Osteoarthritis H133G080136 ............. 3-46

Field Initiated Projects (FIPs)

Improving Cervical and Breast Cancer

Screening for Women with Intellectual

Disabilities H133G090124 .......................... 2-82

Improving New Learning and Memory in

TBI: Applying fMRI to Measure Outcome

H133G090078 ............................................ 2-81

Improving Representative Payeeship for

People with Psychiatric Disabilities and their

Families H133G070072 .............................. 4-32
E-8 Projects by Program Type

Instrument to Measure Recovery-Promoting

Competence Among Providers Serving

Spanish Speaking Mental Health Consumers

H133G060071 ............................................ 4-24

Investigating Environmental Factors

Affecting Community Integration

H133G090036 ............................................ 4-39

Investigating the Effects of Snoezelen in

Children Recovering from Severe Brain

Injury H133G070119 .................................. 2-65

Investigation of Interventions for Sitting

Postural Control in Young Children with

Moderate to Severe Cerebral Palsy

H133G080023 ............................................ 2-79

Life Skills: Transitioning from

Homelessness and Isolation to Housing

Stability and Community Integration

H133G090046 ............................................ 4-26

Making Small Visual Displays Accessible to

People with Vision Loss H133G090026..... 3-54

Micromachined Braille Reader

H133G070135 ............................................ 3-47

Minimal Classroom Requirements for

Optimal Acoustic Access to Speech by

Children with and Without Hearing Loss

H133G060116 ............................................ 3-44

Multimodal Access to Information Graphics

H133G080047 ............................................ 3-31

Natural History of Headache Following

Mild Traumatic Brain Injury

H133G090022 ............................................ 2-94

Neuroanatomical Correlates of Positive

Psychology Among People with Traumatic

Brain Injury: A Biopsychosocial Model

H133G080064 ............................................ 2-77

Noninvasive Examination of ALS Using

Surface EMG H133G090093 ..................... 2-72

Optimized Hands-Free Speech Recognition

H133G050354 ............................................ 3-41

Outpatient Social Skills Training for

Distressed Adolescent Burn Survivors

H133G050079 ............................................ 4-40

Overcoming Gravity Induced Arm and Hand

Dysfunction to Restore Functional Reaching

Following Stroke H133G070089 ................ 3-38

Parent-Infant Interaction Project (PIIP)

H133G080132 ............................................ 4-38

Participation, Subjective Well-Being,

Health, and Spinal Cord Injury: A 35-Year

Longitudinal Study H133G060126 ............. 2-89

Pathways to Depression: An Examination

of Vulnerability and Stress in Adults with

Spinal Cord Injury H133G070020 .............. 2-76

Personal Audio Information Service

H133G070093 ............................................ 3-34

Preparations for In-home Testing of BrainComputer Interfaces Operating Assistive

Technology H133G090005 ........................ 3-45

Public Spending for Disability in the United

States: A Comparative, Longitudinal Study

H133G070163 .............................................. 5-7

Quality of Life in Traumatic Brain Injury Research and Practice: Development of the TBIQOL H133G070138 ................................... 2-80

Researching Accessibility Gaps in Transit

Hub Communication Systems and

Standards H133G090242 ............................ 3-49

RISE - Reflection, Insight, and SelfEmpowerment: Development of a

Cognitive Behavioral Group Therapy

Intervention for Women with Physical

Activity Disabilities who Experience

Depression H133G070214 ......................... 2-83

Sensorimotor Training and Assessment in

Adults with Hemiplegic Cerebral Palsy:

The ULTrA Program H133G050151 .......... 2-74

Systematic Study of the Effectiveness of

AAC Intervention to Improve Conversation

in Individuals with Degenerative Language

Disorders H133G080162 ............................ 3-52

Teen Online Problem Solving for Pediatric

Brain Injury H133G050239 ........................ 4-34

Telephone and In-Person Cognitive

Behavioral Therapy for Depression After

Traumatic Brain Injury H133G070016 ....... 2-93

The Captioned Braille Radio Initiative:

Providing Emergency Information for

Individuals who are Deaf-Blind

H133G090139 ............................................ 3-35

The Effects of a Bicycle Training

Intervention on Health, Physical Activity,

Sleep, and Community Participation in

Youth with Down Syndrome and Autism

Spectrum Disorders H133G090006 ............ 4-27
E- 9 Projects by Program Type

The TATE Project: Training Assistive

Technology in the Environment

H133G090227 ............................................ 3-50

Treatment Components and Active

 Ingredients in a Scheduled Telephone

Intervention for Traumatic Brain Injury

H133G070143 ............................................ 2-84

Understanding the Determinants of Motor

Ability, Self-Care, and Play of Young

Children with Cerebral Palsy

H133G060254 ............................................ 2-86

Universal Design of Tactile Exhibits with

Touch Activated Descriptive Audio for

Aquariums H133G060284 .......................... 3-48

Video Gaming Technology to Promote

Health and Fitness Among Adolescents

with Disabilities H133G080120 .................. 3-39

Virtual Reality Assessment and Treatment of

Hemispatial Neglect H133G060086 ........... 2-87

Web Therapy to Improve Outcomes After

Traumatic Brain Injury in Young Children

H133G060167 ............................................ 4-35

Web-Based Treatment for Aphasia

H133G060055 ............................................ 3-37

Weight Loss by Individuals with Physical

Disabilities H133G090230 .......................... 2-73

Work Environment and Quality of Life Outcomes: A Comparison of the Experiences of

Formal and Informal Caregivers of Persons

with Spinal Cord Injuries H133G060267 ... 4-28

Workplace Accommodation Wizard: An

Assessment and Accommodation Tool for

Employers H133G070063 .......................... 3-36

Zolpidem and Restoration of Consciousness:

An Exploration of the Mechanism of Action

H133G080066 ............................................ 2-85

Model Spinal Cord Injury Systems

Georgia Regional Spinal Cord Injury Care

System H133N060009 ................................ 2-51

Midwest Regional Spinal Cord Injury Care

System (MRSCIS) H133N060014 ............. 2-52

Mount Sinai Spinal Cord Injury Model

System H133N060027 ................................ 2-56

National Capital Spinal Cord Injury Model

System H133N060028 ................................ 2-50

Northeast Ohio Regional Spinal Cord Injury

System H133N060017 ................................ 2-57

Northern New Jersey Spinal Cord Injury

System H133N060022 ................................ 2-55

Northwest Regional Spinal Cord Injury

System H133N060033 ................................ 2-61

Regional Spinal Cord Injury Center of the

Delaware Valley H133N060011 ................. 2-58

Texas Model Spinal Cord Injury System

H133N060003 ............................................ 2-60

The New England Regional Spinal Cord

Injury Center H133N060024 ...................... 2-53

The Rocky Mountain Regional Spinal

Injury System H133N060005 ..................... 2-49

UAB Model Spinal Cord Injury Care System

H133N060021 ............................................ 2-48

University of Michigan Model Spinal Cord

Injury Care System H133N060032 ............. 2-54

University of Pittsburgh Model Center on

Spinal Cord Injury H133N060019 .............. 2-59

Rehabilitation Engineering Research Centers

(RERCs)

Rehabilitation Engineering and Research

Center (RERC) on Universal Design and the

Built Environment at Buffalo

H133E050004 ............................................. 3-15

Rehabilitation Engineering Research Center

for Cognitive Rehabilitation H133E090003 .. 3-5

Rehabilitation Engineering Research Center

for Communication Enhancement (AACRERC) H133E080011 ................................ 3-17

Rehabilitation Engineering Research Center

for Prosthetics and Orthotics

H133E080009 ............................................. 3-12

Rehabilitation Engineering Research Center

for Successful Aging with Disability:

Optimizing Participation Through

Technology (OPTT-RERC)

H133E080024 ............................................. 2-14

Rehabilitation Engineering Research Center

for the Advancement of Cognitive

Technologies (RERC-ACT)

H133E040019 ............................................... 3-4

Rehabilitation Engineering Research Center

for Universal Interface and Information

Technology Access H133E080022 ............. 3-24
E-10 Projects by Program Type

Rehabilitation Engineering Research

Center for Wheeled Mobility in Everyday

Life H133E080003 ....................................... 3-9

Rehabilitation Engineering Research

Center for Wireless Technologies

H133E060061 ............................................... 3-7

Rehabilitation Engineering Research Center

on Accessible Public Transportation

H133E080019 ............................................. 3-20

Rehabilitation Engineering Research Center

on Children with Orthopedic Disabilities

H133E050011 ............................................. 3-14

Rehabilitation Engineering Research Center

on Communication Enhancement

H133E030018 ............................................. 3-16

Rehabilitation Engineering Research Center

on Hearing Enhancement H133E080006 ..... 3-6

Rehabilitation Engineering Research Center

on Recreational Technologies and Exercise

Physiology Benefiting Persons with

Disabilities (RERC RecTech)

H133E070029 ............................................. 3-10

Rehabilitation Engineering Research Center

on Spinal Cord Injury H133E070024 ......... 3-19

Rehabilitation Engineering Research Center

on Telecommunication Access

H133E040013 ............................................. 3-22

Rehabilitation Engineering Research Center

on Telecommunications Access

H133E090001 ............................................. 3-25

Rehabilitation Engineering Research Center

on Telerehabilitation H133E040012 ........... 3-18

Rehabilitation Engineering Research Center

on Telerehabilitation H133E090002 ........... 3-21

Rehabilitation Engineering Research Center

on Wheelchair Transportation Safety

H133E060064 ............................................. 3-13

Rehabilitation Engineering Research Center

on Workplace Accommodations

H133E070026 ............................................... 3-8

Rehabilitation Engineering Research Center:

Develop and Evaluate Technology for Low

Vision, Blindness, and Multi-Sensory Loss

H133E060001 ............................................... 3-3

Rehabilitation Robotics and

Telemanipulation Machines Assisting

Recovery from Stroke Rehabilitation

Engineering Research Center (MARSRERC) H133E070013 ................................ 3-11

Rehabilitation Research and Training Centers

(RRTCs)

Developing Strategies to Foster Community

Integration and Participation (CIP) for

 Individuals with Traumatic Brain Injury

H133B090023 ............................................ 4-13

Improved Employment Outcomes for

Individuals with Psychiatric Disabilities

H133B090014 .............................................. 1-5

Learning and Working During the

Transition to Adulthood H133B090018........ 1-6

Multiple Sclerosis Rehabilitation Research

and Training Center H133B080025 ............ 2-12

Opening Doors for Children with

Disabilities and Special Health Care Needs

H133B060012 .............................................. 4-8

Personal Assistance Services (PAS) in the

21st Century H133B080002 ......................... 4-3

Rehabilitation Research and Training Center

for Children’s Mental Health

H133B040024 .............................................. 4-4

Rehabilitation Research and Training Center

for Community Integration for Individuals

with Disabilities, Strengthening Family and

Youth Participation in Child and Adolescent

Mental Health Services H133B040038 ....... 4-10

Rehabilitation Research and Training Center

for Community Living and Employment for

Individuals with Intellectual and

Developmental Disabilities H133B080005 ... 4-9

Rehabilitation Research and Training Center

for Health and Function Across the

Lifespan of Individuals with Intellectual and

Developmental Disabilities H133B080009 ... 4-5

Rehabilitation Research and Training Center

for Pathways to Positive Futures:

Supporting Successful Transition for

Youth and Young Adults with Serious

Mental Health Conditions H133B090019 ... 4-11

Rehabilitation Research and Training Center

for Recovery and Recovery Oriented

Psychiatric Rehabilitation for Persons with

Long-Term Mental Illness H133B040026 .... 4-7

Rehabilitation Research and Training Center
E- 11 Projects by Program Type

for Vocational Rehabilitation Research

H133B070001 .............................................. 1-3

Rehabilitation Research and Training Center

in Neuromuscular Diseases (RRTC/NMD)

H133B031118 ............................................... 2-3

Rehabilitation Research and Training Center

in Neuromuscular Diseases (RRTC-NMD)

H133B090001 .............................................. 2-4

Rehabilitation Research and Training Center

on Aging with a Physical Disability:

Reducing Secondary Conditions and

Enhancing Health and Participation,

Including Employment H133B080024 ....... 2-13

Rehabilitation Research and Training Center

on Demographics and Statistics

H133B031111 ............................................... 5-5

Rehabilitation Research and Training Center

on Disability in Rural Communities

H133B030501 .............................................. 1-7

Rehabilitation Research and Training Center

 on Disability in Rural Communities

H133B080023 .............................................. 1-8

Rehabilitation Research and Training Center

on Disability Statistics and Demographics

H133B080012 .............................................. 5-6

Rehabilitation Research and Training Center

on Employment Policy and Individuals with

Disabilities H133B040013 ............................ 1-9

Rehabilitation Research and Training Center

on Employment Service Systems H133B040014

1-11

Rehabilitation Research and Training Center

 on Enhancing the Functional and

Employment Outcomes of Individuals Who

Experience a Stroke H133B080031 .............. 2-7

Rehabilitation Research and Training Center

on Health and Wellness in Long Term

Disability H133B040034 ............................ 2-10

Rehabilitation Research and Training Center

on Improving Measurement of Medical

Rehabilitation Outcomes H133B090024 ...... 5-4

Rehabilitation Research and Training Center

on Interventions for Children and Youth

with TBI H133B090010 ............................... 2-9

Rehabilitation Research and Training Center

on Measurement and Interdependence in

Community Living (RRTC/MICL)

H133B060018 .............................................. 4-6

Rehabilitation Research and Training Center

on Measuring Rehabilitation Outcomes and

Effectiveness H133B040032 ........................ 5-3

Rehabilitation Research and Training Center

on Participation and Community Living of

Individuals with Psychiatric Disabilities

H133B080029 ............................................ 4-12

Rehabilitation Research and Training Center

 on Secondary Conditions in Individuals

with SCI H133B090005 ............................. 2-11

Rehabilitation Research and Training Center

on Secondary Conditions in Spinal Cord Injury

H133B090002 .............................................. 2-6

Rehabilitation Research and Training Center

on Spinal Cord Injury: Promoting Health and

Preventing Complications through Exercise

H133B031114 ............................................... 2-5

Rehabilitation Research and Training Center

on Substance Abuse, Disability, and

Employment H133B040012 ....................... 1-12

Rehabilitation Research and Training Center

on Traumatic Brain Injury Interventions

H133B040033 .............................................. 2-8

Rehabilitation Research and Training Center

on Workplace Supports and Job Retention

H133B040011 ............................................. 1-13

University of Illinois at Chicago National Research and Training Center on Psychiatric Disability H133B050003 .................................... 8-3

Small Business Innovation Research (SBIR),

Phase I

A Display Reader for the Vision Impaired

H133S090069 ............................................. 3-67

A Navigation and Object-Location System to

Assist Blind and Low-Vision Individuals in

Indoor Environments H133S090099 .......... 3-63

Clothing Worn by Individuals with Visual

Impairments as a Hands-Free Common

Platform for GPS WayFinding Systems and

Obstacle Avoidance Systems

H133S090064 ............................................. 3-65

Cooling System for Multiple Sclerosis

Patients H133S090061 ................................ 3-66
E-12 Projects by Program Type

CTAS: A Self-Directed Computer

Technology Assessment System for

Students and Adults with Intellectual

Disabilities H133S090012 .......................... 3-59

Development of a Global Access

Information Navigation (GAIN) for Persons

Who Are Blind or Have Low Vision

H133S090026 ............................................. 3-58

Early Math Intervention Program for

Improved Comprehension and

Communication in Problem Solving for

Students with Learning Disabilities

H133S090104 ............................................. 3-69

Haptic Feedback Improvements for

Prostheses H133S090044 ........................... 3-70

Hearsay: A Context-Driven Assistant

Browser for Non-Visual Web Access

H133S090065 ............................................. 3-57

Increasing Mobility and Maneuverability of

Wheelchairs for Indoor, Transportation, and

Recreational Activities H133S090106 ........ 3-62

LiveWire: A Context-Aware, LocationBased Wireless Activity Support System to

Facilitate Independence for Individuals with

Intellectual Disabilities H133S090027 ........ 3-60

Mobile Math Signing Dictionary for iPod

Touch H133S090074 .................................. 3-61

New Electro-Hydraulic Foot Prosthesis

H133S090067 ............................................. 3-71

Transportation Assistant for the Cognitively

Impaired H133S090055 .............................. 3-68

Variable Position Mid-Wheel Drive System

for Power Wheelchairs H133S090013 ........ 3-64

Small Business Innovation Research (SBIR),

Phase II

A Low-Cost Portable/Wearable Device for

Intelligent Stretching and Movement

Training of Hypertonic Forearm in Stroke

with Outcome Evaluation H133S080076 ... 3-74

ADL Access: A Cognitively Accessible

Software Application for Augmented SelfManagement of Activities of Daily Living

H133S090138 ............................................. 4-42

ATLAS: An Accessible Testing, Learning,

and Assessment System for Individuals with

Intellectual Disabilities to Facilitate Inclusion

and Access to the General Curriculum

H133S080066 ............................................. 3-72

Audio-Tactile Interactive Computing with

the Livescribe Pulse Pen H133S090137 ..... 3-78

Connectivity to Modern Electronics for the

Hearing Disabled H133S090130 ................ 3-77

Hearing Companion: Handheld Portable

Sound Identification and Critical Alerting

Functionality for People Who Are Deaf or

Have Hearing Loss H133S080075 ............. 3-75

Low Vision Lime: Solution for Low Vision

Musicians to Read, Perform, Write, and

Print Music Notation H133S070089 ........... 3-82

My ScrivenerTM Innovative Technology to

Enhance Fine Motor Function

H133S070082 ............................................. 3-79

Signing Science Pictionary for Young

Learners Who are Deaf or Hard of Hearing

H133S090134 ............................................. 3-73

Television Assisted Promotion (TAP):

Enhancing Rehabilitation Outcomes with

Familiar Technology H133S080077 ........... 3-81

Utility Arm – An Upper Limb Prosthesis

H133S090131 ............................................. 2-97

Why Go It Alone? The Use of Public

Resources to Enhance Computer

Accessibility for Individuals with Intellectual

Disabilities H133S070096 .......................... 3-80

Wireless EMG Preamp and Improved

Mounting System H133S070084 ................ 3-83

Wireless Wrist Device to Alert the Deaf of

Sounds and Events in Their Environment

H133S080068 ............................................. 3-76

Utilization Projects

ABLEDATA ED-04-CO-0018/0007 .......... 6-12

National Rehabilitation Information Center

(NARIC)ED-08-CO-0095 .......................... 6-11
Model System and Collaborative Projects

F- 3 Model System and Collaborative Projects

Model Brain Injury Systems

Carolinas Traumatic Brain Injury

Rehabilitation and Research System

(CTBIRRS) H133A070042 ........................ 2-32

JFK-Johnson Rehabilitation Institute TBI

Model System H133A070030 .................... 2-28

Mayo Clinic Traumatic Brain Injury Model

System H133A070013 ................................ 2-26

Michigan Traumatic Brain Injury Model

System (SEMTBIS) H133A080044 ........... 2-24

Midwest Regional Traumatic Brain Injury

Model System: Innovative Approaches to

Improve Cognition, Function, and

Community Living H133A080045 ............. 2-22

The Moss Traumatic Brain Injury Model

System H133A070040 ................................ 2-37

The National Data and Statistical Center for

the Traumatic Brain Injury Model Systems

H133A060038 ............................................ 2-19

New York Traumatic Brain Injury Model

System (NYTBIMS) H133A070033 .......... 2-30

North Texas Traumatic Brain Injury Model

System (NT-TBIMS) H133A070027 ......... 2-39

Northern California Traumatic Brain Injury

Model System of Care H133A070038 ........ 2-16

Northern New Jersey Traumatic Brain Injury

System (NNJTBIS) H133A070037 ............ 2-29

Ohio Regional TBI Model System

H133A070029 ............................................ 2-34

The Rocky Mountain Regional Brain Injury

System (RMRBIS) H133A070022 ............. 2-20

The Texas Traumatic Brain Injury Model

System of TIRR H133A070043 ................. 2-41

University of Alabama at Birmingham

(UAB) Traumatic Brain Injury Model

System (UAB TBIMS) H133A070039 ...... 2-15

University of Washington Traumatic Brain

Injury Model System H133A070032 .......... 2-47

Virginia Commonwealth Traumatic Brain

Injury Model System H133A070036 .......... 2-42

Model Burn Injury Systems

Johns Hopkins University Burn Injury

Rehabilitation Model System (JHU-BIRMS)

H133A070045 ............................................ 2-23

North Texas Burn Rehabilitation Model

System (NTBRMS) H133A070024 ........... 2-38

Pediatric Burn Injury Rehabilitation Model

System H133A070026 ................................ 2-40

UCHSC Burn Model System Data

Coordination Center (BMS/DCC)

H133A070006 ............................................ 2-17

University of Washington Burn Model

System H133A020103 ................................ 2-43

University of Washington Burn Model

System H133A070047 ................................ 2-46

Model Spinal Cord Injury Systems

Georgia Regional Spinal Cord Injury Care

System H133N060009 ................................ 2-51

Midwest Regional Spinal Cord Injury Care

System (MRSCIS) H133N060014 ............. 2-52

Mount Sinai Spinal Cord Injury Model

System H133N060027 ................................ 2-56

National Capital Spinal Cord Injury Model

System H133N060028 ................................ 2-50

National Spinal Cord Injury Statistical

Center (NSCISC) H133A060039 ................. 6-3

The New England Regional Spinal Cord

Injury Center H133N060024 ...................... 2-53

Northern New Jersey Spinal Cord Injury

System H133N060022 ................................ 2-55

Northwest Regional Spinal Cord Injury

System H133N060033 ................................ 2-61

Regional Spinal Cord Injury Center of the

Delaware Valley H133N060011 ................. 2-58

The Rocky Mountain Regional Spinal Injury

System H133N060005 ................................ 2-49

Texas Model Spinal Cord Injury System

H133N060003 ............................................ 2-60

UAB Model Spinal Cord Injury Care

System H133N060021 ................................ 2-48

University of Michigan Model Spinal Cord

Injury Care System H133N060032 ............. 2-54

University of Pittsburgh Model Center on

Spinal Cord Injury H133N060019 .............. 2-59
F-4 Model System and Collaborative Projects

Collaborative Projects

Collaborative Spinal Cord Injury Model

Systems Centers Program: Improving

Spinal Cord Injury Rehabilitation Outcomes

H133A060103 ............................................ 2-18

Controlled Trial of Venlafaxine XR for

Depression After SCI: A Multisite Study

H133A060107 ............................................ 2-45

Individualized Planning for the First Year

Following Acute Rehabilitation Project

H133A080023 ............................................ 2-35

TBI Model System Collaborative Study of

Amantadine for Post TBI Irritability and

Aggression H133A080035 ......................... 2-33