2004

Fiscal Year 2004

NIDRR Program Directory

Produced by The National Rehabilitation Information Center

A project funded by The National Institute on Disability and Rehabilitation Research, project number ED-02-CO-0002.

National Institute on Disability and Rehabilitation Research

Program Directory 2004

Produced by the

National Rehabilitation Information Center

Lanham, MD

Mark X. Odum

Director

Jessica H. Chaiken

Media and Public Education Coordinator

Devin L. Briscoe

Media Specialist
The full text of this public domain publication is available at the NARIC’s home page at http://

www.naric.com and in alternate formats upon request. For more information, please contact us at:

NARIC

4200 Forbes Boulevard, Suite 202

Lanham, MD 20706

800/346-2742 or 301/459-5900 (Voice)

or 301/459-4263 (TTY).
Contents

Introduction .....................................................................................................i

Research Priorities

Employment Outcomes .................................................................................1

Health and Function.......................................................................................2

Technology for Access and Function............................................................3

Independent Living and Community Integration.........................................4

Associated Disability Research Areas ............................................................5

Knowledge Dissemination and Utilization ...................................................6

ADA Technical Assistance Projects ...............................................................7

Capacity Building for Rehabilitation Research and Training ........................... 8

State Technology Assistance .......................................................................... 9

Introduction 1

Introduction

The mission of the National Institute on Disability and Rehabilitation Research (NIDRR) is to generate, disseminate and promote knowledge that will improve the lives of persons with disabilities in their

communities. NIDRR conducts comprehensive and coordinated programs of research and related

activities to assist in the achievement of the full inclusion, social integration, employment, and independent living of people with disabilities. This edition of the NIDRR Program Directory lists all projects

funded by NIDRR during the 2004 fiscal year.

NIDRR’s Long-Range Plan, announced in the Federal Register, December 7, 1999 (http://

www.ed.gov/offices/OSERS/NIDRR/#LRP), provides background on NIDRR’s conceptual base. It

describes the “new paradigm of disability,” which posits that disability is an interaction between the

individual and the environment. NIDRR’s research focus includes such areas as: employment outcomes, health and function, technology for access and function, independent living and community

integration, associated disability research areas, knowledge dissemination and utilization, and capacity

building for rehabilitation and international activities. For detailed descriptions of these areas, consult

the Long-Range Plan.

NIDRR’s Research Program

NIDRR’s research is conducted via a network of individual research projects and centers of excellence

throughout the country. Most NIDRR grantees are universities or providers of rehabilitation or related

services. NIDRR’s largest funding programs are the Rehabilitation Research and Training Centers

(RRTCs) and Rehabilitation Engineering Research Centers (RERCs). NIDRR also makes awards for

information dissemination and utilization centers and projects, field initiated projects, research and

development projects, advanced research training projects, Mary E. Switzer fellowships and NIDRR

scholars, small business innovative research, and model systems of care. NIDRR also administers the

State Technology Assistance Projects, the Assistive Technology Loan Funds, and the Disability and

Business Technical Assistance Centers.

Disability and Rehabilitation Research Projects

The Disability and Rehabilitation Research Projects (DRRP) program allows for projects with special

emphasis on research, demonstrations, training, dissemination, utilization, and technical assistance.

Projects may include combinations of these activities. True to the mission of NIDRR, these projects

may develop methods, procedures, and rehabilitation technology to assist in achieving the full inclusion and integration into society, employment, independent living, family support, and economic and

social self-sufficiency of individuals with disabilities, especially individuals with the most significant

disabilities, or to improve the effectiveness of services authorized under the Rehabilitation Act.

Model Systems

NIDRR administers programs that have become world-renowned model systems of care for persons

with spinal cord injuries, burns, and traumatic brain injuries. The Model Systems establish innovative

projects for the delivery, demonstration, and evaluation of comprehensive medical, vocational, and

other rehabilitation services. The work of the Model Systems begins at the point of injury and ends
2 Introduction

with successful re-entry into full community life. These projects collect and contribute data on patient

characteristics, diagnoses, causes of injury, interventions, outcomes, and costs to a uniform national

database; participate in collaborative research with other Model System centers; and coordinate research efforts with other related grant recipients.

Advanced Rehabilitation Research Training Projects

The Advanced Rehabilitation Research Training (ARRT) Program (formerly known as the Research

Training Grants Program) expands the capacity of the field of rehabilitation research by providing

advanced training opportunities. These projects provide rehabilitation research training for persons

with clinical or other experience, who may be lacking certain formal research training. Grants are made

to institutions to recruit qualified persons with doctoral or similar advanced degrees with clinical,

management, or basic science research experience, and prepare them to conduct independent research

on problems related to disability and rehabilitation. This research training may integrate disciplines,

teach research methodology in the environmental or new paradigm context, and promote the capacity

for Disability Studies and rehabilitation science. These training programs must operate in interdisciplinary environments and provide training in rigorous scientific methods.

Rehabilitation Research and Training Centers

NIDRR’s Rehabilitation Research and Training Centers (RRTCs) conduct coordinated and integrated

advanced programs of research targeted toward the production of new knowledge, which may improve rehabilitation methodology and service delivery systems, alleviate or stabilize disabling conditions, or promote maximum social and economic independence for persons with disabilities. Operated

in collaboration with institutions of higher education or providers of rehabilitation or other appropriate

services, RRTCs serve as centers of national excellence in rehabilitation research. Also, they are

national or regional resources for research information for individuals with disabilities and the parents,

family members, guardians, advocates, or authorized representatives of the individuals. These centers

also conduct related training programs, including graduate, pre-service and in-service training. The

centers also disseminate and promote the utilization of research findings.

Rehabilitation Engineering Research Centers

Rehabilitation Engineering Research Centers (RERCs) conduct programs of advanced research of an

engineering or technical nature designed to apply advanced technology, scientific achievement, and

psychological and social knowledge to solve rehabilitation problems and remove environmental

barriers. Each center is affiliated with one or more institutions of higher education or nonprofit organizations. The RERCs’ work in a rehabilitation setting provides an environment for cooperative research

and the transfer of rehabilitation technologies into rehabilitation practice. Involved at both the individual and systems levels, RERCs seek to find and evaluate the newest technologies, products, and

methods that ultimately can benefit the independence of persons with disabilities and the universal

design of environments for all people of all ages. The centers also exchange technical and engineering

information worldwide and improve the distribution of technological devices and equipment to individuals who need them.
Introduction 3

State Technology Assistance Projects

This program supports statewide, consumer-driven, technology-related assistance networks for individuals of all ages and disabilities. States and territories are eligible to apply for one grant per entity

which spans a total of ten years of Federal funding. The first phase is a development grant and lasts for

three years. The second phase is known as the first extension and can last for two more years. The

third and final phase is known as the second extension and lasts for five additional years. The Assistive

Technology Act of 1998 (AT Act) authorized three additional years for States that have completed ten

years, at a reduced funding level. Several states have received one-year alternative financing projects

aimed at providing financial assistance in the purchase of assistive technology. Projects work with

public and private lenders in their states.

Fellowships

Fellowships, named for the late Mary E. Switzer, give individual researchers the opportunity to develop new ideas and gain research experience. There are two levels of fellowships: Distinguished

Fellowships and Merit Fellowships. Distinguished Fellowships go to individuals of doctorate or

comparable academic status, who have had seven or more years of experience relevant to rehabilitation

research. Merit Fellowships are given to persons with rehabilitation research experience, but who do

not meet the qualifications for Distinguished, usually because they are in earlier stages of their careers.

Fellows work for one year on an independent research project of their design.

NIDRR Scholars

The Scholars program attempts to build research capacity by recruiting undergraduates with disabilities

to work in NIDRR-funded Centers and projects and introduces them to disability and rehabilitation

research issues. Scholars gain work experience and participating centers receive a small stipend. This

program is an innovative approach aimed at generating interest in research careers for persons with

disabilities.

ADA Technical Assistance Projects

NIDRR administers a network of grantees to provide information, training, and technical assistance to

businesses and agencies with responsibilities under the Americans with Disabilities Act (ADA). Ten

regional Disability and Business Technical Assistance Centers (DBTACs) are funded to provide

information and referral, technical assistance, public awareness, and training on all aspects of the

ADA. Several National Training Projects target particular groups, organizations, or subject areas for

ADA training and the ADA Technical Assistance coordinator contract assists all of the grantees with

their activities.

Small Business Innovative Research

Small Business Innovative Research (SBIR) grants help support the production of new assistive and

rehabilitation technology. This two-phase program takes a product from development to market readiness.
4 Introduction

NIDRR Contracts

Through its contracts, NIDRR seeks improved methods, systems, products, and practices to add to its

work. The contracts are for specific activities related to management, research, and information dissemination.

NARIC and the NIDRR Program Directory

The Program Directory is compiled by the National Rehabilitation Information Center (NARIC).

NARIC functions as NIDRR’s library, providing the rehabilitation community with information and

referral services to help locate pertinent research related to specific areas of expertise. Since 1977,

NARIC has been the primary source of rehabilitation and disability information generated by NIDRR

funds, with special priority services to NIDRR staff and NIDRR-funded project staff.

NARIC also produces REHABDATA, an index of disability and rehabilitation literature produced by

NIDRR grantees as well as commercial publishers.. Copies of NIDRR-supported research products

are received by NARIC and added to the reference collection and REHABDATA database. Information about holdings are available online at http://www.naric.com.

Neither NARIC nor NIDRR assumes liability for the Directory’s contents or the use thereof. NARIC

does not evaluate or certify the programs or products of the organizations listed in the Directory.

This Directory is not intended for use as a fiscal document to show how NIDRR funds are allocated;

its purpose is to display the range of programs that NIDRR supports. This listing is current as of

January 15, 2005. This directory may incude projects that have passed the indicated extension date.

NARIC operates under U.S. Department of Education contract ED-02-CO-0002.

Employment Outcomes

NIDRR seeks to improve employment outcomes for people with disabilities by

funding research into a wide spectrum of employment and disability issues, including

economics; Federal, State, and community employment programs; accommodation;

technology; education; and ergonomics and the work environment.

Contents

Rehabilitation Research and Training Centers (RRTCs) ............................................................................ 3

Disability and Rehabilitation Research Projects ...................................................................................... 11

Field Initiated Projects (FIPs) ............................................................................................................... 15

NIDRR Program Directory FY 2004 - Employment Outcomes 1-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Arkansas

Rehabilitation Research and Training Center on Improving Vocational

Rehabilitation Services for Individuals Who Are Deaf or Hard of

Hearing

University of Arkansas/Little Rock

College of Education

4601 West Markham Street

Little Rock, AR 72205

dwatson@uark.edu

http://www.uark.edu/deafrtc

Principal Investigator: Douglas Watson, PhD

Public Contact: 501/686-9691; Fax: 501/686-9698

Project Number: H133B010501

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $600,000; FY 02 $600,000; FY 03 $600,000; FY 04 $600,000

Abstract: This program conducts coordinated research and training to enhance the rehabilitation

outcomes of persons who are deaf or hard of hearing who are served by VR and related employment

programs. When appropriate, the unique needs of specific subgroups within this diverse and heterogeneous population are investigated. The ultimate goal of these efforts is to improve the capacity of the

VR system and related programs to address the career preparation, entry, maintenance, and advancement, as well as the community living needs, of the target population. Research activities include:

investigating the impact of changes in federal employment and rehabilitation legislation and policy on

the delivery of services to the target population; investigating the impact of business practices that

contribute to accessible work and workplace supports to enhance the employment of the target population; and identifying, developing, and assessing rehabilitation-related innovations that enhance employment and community living outcomes of the target population.
1-4 NIDRR Program Directory FY 2004 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Iowa

Rehabilitation Research and Training Center on Workforce Investment

and Employment Policy for Persons with Disabilities

University of Iowa College of Law

Law, Health, Policy, and Disability Center

100 Gilmore Hall

Iowa City, IA 52242

mmorris@ncbdc.org

http://www.disability.law.uiowa.edu

Principal Investigator: Michael Morris, JD; Peter D. Blanck, PhD, JD; Michael Collins; Robert

Silverstein

Public Contact: Michael Morris, JD, Project Director 202/521-2930; Fax: 202/218-7297

Project Number: H133B010102

Start Date: November 01, 2001

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $588,756; FY 03 $224,981; FY 04 $0 (No-cost extension through 4/30/

2005)

Abstract: This Center helps expand, improve, and modify disability policy and other more general

policies in order to improve the employment status of Americans with disabilities and increase their

independence and self-sufficiency. Based on research from this project and other NIDRR-funded

projects, this project establishes an information and technical assistance resource to government leaders

and decision makers at state and federal levels, individuals with disabilities, parents and family members, and other interested parties, offering new and revised approaches to workforce development and

employment policy. Studies conducted by this project include: (1) an analysis of the relationship

between select federal and state policies upon the employment of people with disabilities, (2) an

analysis of the policy-based implications of outcome-based reimbursement on the delivery of employment and rehabilitation services to people with disabilities, and (3) an analysis of the effect of civil

rights protections and multiple environmental factors on promoting or depressing the employment

status of people with disabilities. The Center actively seeks to be outcome-focused and involve individuals with disabilities, parents, and family members in all facets of project activities, including

training, research, information dissemination, and technical assistance.
NIDRR Program Directory FY 2004 - Employment Outcomes 1-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Mississippi

RRTC on Improving Vocational Rehabilitation Services for Individuals

Who Are Blind or Have Severe Visual Impairments

Mississippi State University

P.O. Box 6189

Mississippi State, MS 39762

schaefer@ra.msstate.edu

http://www.blind.msstate.edu

Principal Investigator: J. Elton Moore, EdD 662/325-2001

Public Contact: Kelly Schaefer 662/325-7825 (V); 662/325-8693 (TTY); Fax: 662/325-8989

Project Number: H133B010101

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $600,000; FY 02 $600,000; FY 03 $600,000; FY 04 $600,000

Other Funding: FY 01 $100,000 (Rehabilitation Services Administration); FY 02 $100,000 (RSA);

FY 03 $100,000 (RSA); FY 04 $100,000 (RSA)

Abstract: This program includes a variety of research and training activities that focus on improving

VR services for individuals who are blind or have severe visual impairments. Activities include: (1)

investigating and documenting the impact of changes in disability and employment legislation on the

unique employment-related needs of individuals who are blind or have visual impairments, as well as

their impact on service delivery options and policy; (2) investigating, documenting, and analyzing

existent state and federal data sets to determine different employment outcomes for persons who are

blind or have visual impairments and the relationship of the outcomes to client and service provider

characteristics; (3) investigating and documenting how state VR agencies, other public agencies, and

private service providers overcome environmental barriers in order to improve employment outcomes

for individuals who are blind or have visual impairments; (4) developing a national information and

resource referral database for the training needs of state business enterprise program facilities, developing and delivering training programs to meet the identified training needs, and developing measures

that can be used to evaluate the efficacy of the training; (5) conducting three conferences to train VR

staff on state-of-the-art information and computer technology for individuals who are blind or have

visual impairments; and (6) conducting a coordinated and advanced program of training in rehabilitation research focusing on blindness and low vision, including training in applied research methodology

that is designed to increase the number of qualified doctoral-level researchers working in the area of

blindness rehabilitation.
1-6 NIDRR Program Directory FY 2004 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Montana

Rehabilitation Research and Training Center on Disability in Rural

Communities

University of Montana

The University of Montana Rural Institute:

A Center for Excellence in Disability Research, Education and Services

52 Corbin Hall

Missoula, MT 59812-7056

rural@ruralinstitute.umt.edu

http://rtc.ruralinstitute.umt.edu

Principal Investigator: Tom Seekins, PhD 406/243-2654

Public Contact: Diana Spas 888/268-2743 (V, information service only); 406/243-5467 (V); 406/243-

4200 (TTY); Fax: 406/243-2349

Project Number: H133B030501

Start Date: December 01, 2002

Length: 60 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 03 $600,000; FY 04 $600,000; FY 05 $600,000

Abstract: The research conducted by this project improves the employment status of people with

disabilities in the rural U.S., enhances their ability to live independently, and advances the science of

rural disability studies. Four core areas comprise eleven research projects in rural employment and

economic development; rural health and disability; rural community transportation and independent

living; and rural policy foundations. Projects include: (1) develop scientific methods to measure how

rural environments influence an individual ̃’s community participation; (2) collaborate with very small

rural businesses to employ people with disabilities; (3) improve rural transportation options; and (4)

create programs to prevent or improve secondary conditions. Other projects explore ways for new

partners, including faith-based organizations, to be involved in improving rural services. A training

program disseminates research findings, trains students, and sparks the creative engagement of

policymakers and social advocates. The innovative STATE (Same-Time Availability to Everyone)

policy requires that the project provide standard print publications to the general public only when at

least two alternative formats are also available to individuals with disabilities.
NIDRR Program Directory FY 2004 - Employment Outcomes 1-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Employment Policy

and Individuals with Disabilities

Cornell University

Employment and Disability Institute

School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853-3901

smb23@cornell.edu

http://edi.cornell.edu/ped/dep/rrtc.html

Principal Investigator: Susanne Bruyère, PhD; Richard Burkhauser, PhD; David Stapleton, PhD

Public Contact: Susanne Bruyère, PhD 607/255-9536 (V); 607/255-2891 (TTY); Fax: 607/255-2763

Project Number: H133B040013

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 04 $700,000; FY 05 $700,000

Abstract: The ultimate goal of the Employment Policy Rehabilitation Research and Training Center

(EP-RRTC) is to increase the employment and economic self-sufficiency of people with disabilities

and improve the quality of their lives. The immediate purpose is to contribute to the success of the

transition from caretaker policies to economic self-sufficiency policies. Specific goals and objectives

are: completion of new research activities that will generate knowledge about the effects of past disability policy and other factors on economic self-sufficiency, the impact of current and future initiatives

designed to promote economic self-sufficiency, and/or the likely success of new policy options;

completion of 20 publishable papers and companion policy briefs; training of consumers via 12 or

more Washington-based Disability Policy Forums; training of 5 graduate students; a third-year conference; a conference volume; and technical assistance to consumers on policy research and evaluation

methods and data. Short-term project outcomes include: annual interpretation of updated employment

rate trends; a synthesis and critique of many relevant evaluation efforts; three or more significant policy

options and ideas for next steps; reviews of three or more significant policy or program successes;

detailed information on interactions between numerous programs and policies, and how they discourage employment; estimates of impacts of two public policies on employment and earnings for state VR

clients; estimates of the impact of the ADA on both employer provision of accommodations and job

retention after disability onset; estimates of the return to higher education for those with profound

hearing loss; and two additional analyses of the role that human capital plays in determining economic

self-sufficiency for adults with disabilities. Intermediate outcomes include use of this information in the

policy improvement effort, and long-term outcomes include policy changes that increase the economic

self-sufficiency of people with disabilities.
1-8 NIDRR Program Directory FY 2004 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Improving

Employment Outcomes

Hunter College of CUNY

Research Foundation of CUNY

695 Park Avenue

New York, NY 10021

joneil@hunter.cuny.edu

Principal Investigator: John O’Neill, PhD 212/772-5188

Public Contact: Fax: 212/650-3198

Project Number: H133B040014

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 04 $699,981; FY 05 $699,973

Abstract: This Employment Service Systems Research and Training Center develops, enhances, and

utilizes partnerships to improve the quality of employment services, opportunities, and outcomes for

people with disabilities. Five research projects have been designed to meet this goal and examine

partnerships across public agencies, between not for-profit and public agencies, and between rehabilitation agencies and businesses. The Consortia for Employment Success (CES) creates and evaluates

fully integrated disability service provider networks in three local communities. The CES increases

access for people with disabilities to both effective, comprehensive placement services, and a wellmanaged and centralized employer network that will increase employment and career advancement

opportunities for persons with disabilities. The Workplace Socialization Model (WPS) supplements the

CES Model by focusing on job enhancement and retention. The WPS aims to extend the job tenure of

employees with a disability and other positive work outcomes including the employee’s job satisfaction, organizational commitment, and level of work culture competency, as well as the employer’s

satisfaction with the employee’s job performance. Identification of “Good Practices” Within Vocational

Rehabilitation is designed to identify a variety of good practices currently being used in the StateFederal VR system across the U.S. that facilitate consumer access to services and enhance employment

outcomes. Designing and Testing Comprehensive Employment Practice and Policy Initiatives within a

Vocational Rehabilitation State Agency develops and tests a model that leads to enhanced employment

outcomes. The model includes the “human capital” characteristics of persons with disabilities as well

as what vocational rehabilitation delivery systems add to these human capital factors to improve

outcomes. A Study of Disability Navigators in One-Stops collects data on Workforce Investment Act

regions in which Navigators operate and compares levels of customer satisfaction and employment

outcomes between regions that use Navigators and regions that have no such positions.
NIDRR Program Directory FY 2004 - Employment Outcomes 1-9

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Ohio

Rehabilitation Research and Training Center on Substance Abuse,

Disability, and Employment

Wright State University

School of Medicine

Substance Abuse Resources and Disability Issues (SARDI)

3171 Research Park Boulevard, Room 255

Kettering, OH 45420

sardi@wright.edu

http://www.sardi.wright.edu

Principal Investigator: Dennis C. Moore, EdD

Public Contact: Connie Hart 937/775-1484 (V/TTY); Fax: 937/775-1495

Project Number: H133B040012

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 04 $699,998; FY 05 $699,983

Abstract: This RRTC builds on previous findings to positively impact persons with disabilities who

also experience substance use disorders, as well as the service providers upon whom they depend. The

highly integrated program of research addresses the following goals and objectives: (l) Promote widespread use of substance use disorder screening among persons with disabilities who utilize disabilityrelated employment services. This is accomplished by developing and validating a new substance

abuse screener called the “SASSI-VR”. Following two stages of development and validation, the

SASSI-VR is evaluated in three vocational rehabilitation (VR) programs on a statewide basis. (2)

Conduct a randomized clinical trial of a model of supported employment, Individualized Placement

and Support (IPS), to test its efficacy among persons with traumatic brain injury or other severe disabilities that also have a substance use disorder. The two trial sites are affiliated with rehabilitation

programs in the Wright State and Ohio State medical schools. Utilization of the IPS model with the

study populations holds tremendous potential or impacting services delivery for consumers who

experience very low rates of employment. (3) Research policy and practices relative to their impact on

VR services for persons with a disability and coexisting substance abuse. Serving as a critical complement to Rl, the roles of policies, statutes, guidelines, and VR service delivery practices will be investigated within the larger community of public agencies. (4) Investigate factors that specifically contribute

to unsuccessful case closure among consumers of VR services. This component studies recent VR

unsuccessful closures and their counselors, and the study has particular sensitivity to the role of “hidden” substance abuse among unsuccessful closures.
1-10 NIDRR Program Directory FY 2004 - Employment Outcomes

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Virginia

Rehabilitation Research and Training Center on Workplace Supports

and Job Retention

Virginia Commonwealth University

1314 West Main Street, Box 842011

Richmond, VA 23284-2011

tcblanke@vcu.edu

http://www.worksupport.com

Principal Investigator: Paul Wehman, PhD

Public Contact: Valerie Brooke, Director of Training 804/828-1851 (V); 804/828-2494 (TTY); Fax:

804/828-2193

Project Number: H133B040011

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: Edna Johnson

NIDRR Funding: FY 04 $699,981; FY 05 $699,973

Abstract: The purpose of the RRTC on Workplace Supports and Job Retention is to study those

supports which are most effective in the workplace for assisting persons with disabilities to maintain

employment and advance their careers. Research includes two long-term prospective randomized

experimental control research projects: (1) determining the efficacy of public/private partnerships, and

(2) determining the efficacy of business mentoring and career based interventions with college students

with disabilities. The RRTC is partnered with Manpower, Inc., several community rehabilitation

programs, and the VCU Business Roundtable. Additional projects look at disability management

practices, extended employment supports, job discrimination in employment retention, benefits planning and assistance, and workplace supports. These studies are done in conjunction with Equal Employment Opportunity Commission, the Society of Human Resource Professionals, and the U.S.

Chamber of Commerce.
NIDRR Program Directory FY 2004 - Employment Outcomes 1-11

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Iowa

Model Distance-Learning Computer Training Program for Blind and

Visually Impaired Individuals

Iowa Department for the Blind

524 Fourth Street

Des Moines, IA 50309

assist@blind.state.ia.us

http://www.blind.state.ia.us/assist

Principal Investigator: Curtis Chong

Public Contact: 515/281-1361; Fax: 515/281-5781

Project Number: H133A010104

Start Date: December 01, 2001

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 01 $299,565; FY 02 $299,463; FY 03 $599,028; FY 04 $299,315

Abstract: This project creates a model distance-learning program that delivers computer training to

people who are blind or who have visual impairments. The purpose of this program is to increase IT

educational opportunities and employability in the IT field. Project objectives include: (1) developing a

model distance-learning computer training program for people who are blind that results in employment in the IT field; (2) developing 13 distance-learning computer training courses for individuals who

are blind or who have visual impairments and VR professionals; (3) training and preparing 150 individuals who are blind or who have visual impairments for Microsoft Office certification and thus

prepare them for entry-level IT positions; (4) training 50 people who are blind and VR professionals to

provide computer training to job seekers who are blind, thus increasing future IT educational opportunities for people who are blind and those who have visual impairments; and (5) disseminating training

materials and research results to agencies serving individuals who are blind or who have visual impairments.
1-12 NIDRR Program Directory FY 2004 - Employment Outcomes

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Iowa

I.T. Works

University of Iowa

Law, Health, Policy, and Disability Center

431 Boyd Law Building

Iowa City, IA 52242

james-schmeling@uiowa.edu

http://disabilities.law.uiowa.edu

Principal Investigator: Peter D. Blanck, PhD, JD 319/335-9043

Public Contact: Michael Morris, JD, 202/521-2930; James Schmeling, JD, 319/335-8459; Fax: 319/

335-9098 (Blanck)

Project Number: H133A011803

Start Date: November 01, 2001

Length: 60 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 01 $299,935; FY 02 $299,724; FY 03 $299,908; FY 04 $299,788

Abstract: The goal of the I.T. Works project is to identify barriers to and facilitators of the hiring,

retention, advancement, and wages of individuals with disabilities. Research shows that the percentage

of working-age individuals with disabilities in full- or part-time positions is substantially lower than the

percentage of working-age people without a disability, and there is a demand for trained IT workers.

Increasing the employment of individuals with disabilities in IT-related jobs would increase the employment of individuals with disabilities overall and reduce the shortage for trained IT workers. Research activities for this project include a theoretical model in which predictive measures include

environmental factors, organizational factors, attitudinal factors, and individual characteristics. Outcome measures in the model include hiring rate, advancement rate, retention rate, and wages of individuals with disabilities. Training activities allow for the distribution of the research findings to diverse

target audiences, including employers, IT trainers and professionals, persons with disabilities in diverse

employment settings, other researchers, and relevant policy-makers. Target audiences also include IT

employers, IT training certification bodies, human resource managers, community colleges and university continuing education programs, and Centers for Independent Living and other disability-related

organizations.
NIDRR Program Directory FY 2004 - Employment Outcomes 1-13

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Mississippi

Persons Aging with Hearing and Vision Loss

Mississippi State University

Rehabilitation Research and Training Center on Blindness and Low Vision

P.O. Box 6189

Mississippi State, MS 39762

bjlejeune@colled.msstate.edu

http://www.blind.msstate.edu

Principal Investigator: B.J. LeJeune, MEd., RTC, CRC

Public Contact: 662/325-2001; 662/325-8693 (TTY); Fax: 662/325-8989

Project Number: H133A020701

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $500,000; FY 03 $500,000; FY 04 $500,000; FY 05 $500,000

 ̃ Abstract: This project investigates strategies to improve outcomes for persons who are over 55 with

hearing and vision loss, especially those who have a sensory disability and acquire a second as a result

of the aging process. The project conducts a variety of research, development, training, and dissemination activities and evaluates both technology and model service delivery approaches for improving

employment and community integration options. A Participatory Action Research (PAR) Team provides guidance and direction. The project solicits direct input from key stakeholders as part of the

ongoing planning, development, and implementation of research activities. These activities include the

use of focus groups, a panel of experts, and a study sample that includes a nationally representative

sample of older individuals who are blind or visually impaired and losing their hearing, and those who

are deaf or hard of hearing and losing their vision. This is a collaborative project of the Rehabilitation

Research and Training Center on Blindness and Low Vision at Mississippi State University, San Diego

State University, and the Helen Keller National Center for Deaf-Blind Youths and Adults.
1-14 NIDRR Program Directory FY 2004 - Employment Outcomes

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Missouri

Preparing Avenues for Competitive Employment in Information

Technology (PACE-IT) Project

University of Missouri/Columbia

Educational and Counseling Psychology

205 Lewis Hall

Columbia, MO 65211

hollidayg@missouri.edu

http://paceit.missouri.edu

Principal Investigator: Greg Holliday, PhD 573/882-8329

Public Contact: Lee Henson, Project Coordinator 573/884-7278; Fax: 573/884-3399

Project Number: H133A011802

Start Date: November 01, 2001

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $293,183; FY 02 $290,191; FY 03 $297,480; FY 04 $292,620; FY 05

$298,703

Abstract: Preparing Avenues for Competitive Employment in Information Technology (PACE-IT)

develops a comprehensive, person-centered system that assists local students with disabilities in their

transition to professional employment in IT-related careers following graduation. The project ensures

that students with disabilities at the University of Missouri-Columbia engage in experiential opportunities in IT-related work settings with appropriate support. Participants also receive individualized

accommodations, electronic portfolios, and professional mentoring in their chosen fields to enable them

to be competitive in the IT job market upon graduation. The partnership involves university student

services; departments of state government, agencies, government officials; and area businesses (totaling

21 entities).
NIDRR Program Directory FY 2004 - Employment Outcomes 1-15

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Arkansas

Reaching Hard of Hearing Workers in the Mainstream: Implications

for Consumers and Service Professionals

University of Arkansas

College of Education and Health Professionals

4601 West Markham Street

Little Rock, AR 72205

dwatson@uark.edu

http://www.uark.edu/deafrtc

Principal Investigator: Douglas Watson, PhD

Public Contact: 501/686-9691; Fax: 501/686-9698

Project Number: H133G010156

Start Date: September 01, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000; FY 04 $0 (No-cost extension

through 5/31/2005)

Abstract: This project investigates career and work-related life experiences of persons who are hard of

hearing, including the utilization of rehabilitation services by hard of hearing individuals. Most existing

studies of this population have been limited to convenience samples, a methodological approach that is

likely to present a fragmented and potentially inaccurate picture of these workers and their VR needs.

Research with representative samples of hard-of-hearing workers is critically needed so results can be

obtained that are more valid. Additionally, the project studies the existing practices and policies used

by VR professionals as they deliver rehabilitation and employment services to hard-of-hearing adults.

These professionals can offer valuable insights into their abilities to serve this population.
1-16 NIDRR Program Directory FY 2004 - Employment Outcomes

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Comparison of Two Employment Models for Consumers with Severe

Mental Illness

The Thresholds

4101 North Ravenswood Avenue

Chicago, IL 60613

taffy@thresholds.org

Principal Investigator: Taffy (M.L.) McCoy, PhD

Public Contact: 773/880-6260, ext. 230; Fax: 773/880-5755

Project Number: H133G990155

Start Date: July 01, 1999

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $150,000; FY 00 $150,000; FY 01 $150,000; FY 02 $0 (No-cost extension

through 7/1/2003); FY 03 $0 (No-cost extension through 12/31/2004)

Abstract: This project conducts a randomized controlled trial comparing supported employment with

well-established, comprehensive psychiatric rehabilitation approaches. It also investigates interactions

between consumer characteristics and employment approaches, toward an understanding of the best

VR strategies for people of color, especially people from the African American community. This study

compares the effectiveness of two important, popular employment models for people with Severe

Mental Illness (SMI). The Diversified Placement Approach (DPA) offers a gradual, stepwise preparation for competitive employment, including prevocational training, agency-run business opportunities,

group placements, individual placements, and ultimately movement into independent employment, all

available on a flexible, individualized basis without fixed time limits. The second model is a supported

employment model developed in New Hampshire, known as Individual Placement and Support (IPS).

IPS is a supported employment approach for individuals with SMI. As a consumer-oriented approach,

key features of the IPS model include individualized planning with careful attention to consumer

preferences in the job matching process, close coordination between rehabilitation and treatment, and

rapid job search.
NIDRR Program Directory FY 2004 - Employment Outcomes 1-17

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

LET’S ROLL: Understanding and Responding to the Needs of People

with Disabilities and the Ticket-To-Work Program

DePaul University

College of Liberal Arts and Sciences

Psychology Department

2219 North Kenmore Avenue, Suite 420

Chicago, IL 60614

bhernan4@depaul.edu

Principal Investigator: Brigida Hernandez, PhD

Public Contact: 773/325-4840; Fax: 773/325-7888

Project Number: H133G030165

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: The mission of the project is threefold. First, the project builds scientific knowledge regarding the needs of people with disabilities as they pertain to the Ticket-to-Work program and, more

generally, vocational rehabilitation services. Second, there is a concentrated emphasis on examining the

diversity of needs based on racial/ethnic background and type of disability. Lastly, the project aims to

understand and address the capacity of employment networks and offices of rehabilitation services in

terms of their outreach and delivery of services.
1-18 NIDRR Program Directory FY 2004 - Employment Outcomes

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Job Retention Factors for Homeless People with Significant Disabilities

Sargent College of Health and Rehabilitation Sciences

Boston University

635 Commonwealth Avenue

Boston, MA 02215

nhursh@bu.edu

http://www.cwsdos.org

Principal Investigator: Norman Hursh, ScD

Public Contact: 617/353-2709; Fax: 617/353-8914

Project Number: H133G020092

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $150,000; FY 03 $149,999; FY 04 $149,999

Abstract: This project studies the major factors that promote or limit job retention and sustained

employment for approximately 200 homeless individuals with significant disabilities who have successfully transitioned from unemployment to competitive employment and permanent housing. Unemployment rates, wage levels, benefits, and educational levels for individuals with disabilities are unacceptably low when compared to the general population and access to quality jobs with decent wages is

lower still for individuals with disabilities who are homeless, or who reside in supported or subsidized

housing. The goals of this project are: (1) to study the relationship between successful job retention and

the individual characteristics and coping strategies of homeless people with significant disabilities; (2)

to study the relationship between successful job retention and different workplace supports, program

services, and homeless resources used by homeless people with disabilities; (3) to study how specific

individual characteristics, and different workplace and program supports and resources, interact to

influence job retention and sustained employment; and (4) to disseminate results of the study to employment and vocational rehabilitation programs, homeless resources, workforce development programs, advocacy groups, and interested stakeholders.
NIDRR Program Directory FY 2004 - Employment Outcomes 1-19

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Exploratory Study of the Relationship Between Stigma at the

Workplace and the Vocational Recovery of People with Psychiatric

Disabilities

Boston University

Center for Psychiatric Rehabilitation

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue

Boston, MA 02215

zlatka@bu.edu

http://www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133G030190

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $149,985; FY 04 $149,938; FY 05 $149,971

Abstract: The purpose of this project is to study the relationship between stigma of mental illness at

the workplace and the vocational recovery of persons with psychiatric disabilities. More specifically,

the project focuses, on one hand, on operationalizing the traumatic negative impact of stigma on mental

health consumers’ capacity to obtain and sustain competitive employment, and, on the other hand, on

the objective and subjective factors (i.e., supportive work environment, effective coping strategies, etc.)

that minimize the interference of stigma with the vocational recovery of persons with psychiatric

disabilities. In addition, the study explores the pivotal role of disclosure at the workplace in understanding the complex, multi-faceted relationship between stigma and the vocational recovery among persons

with serious mental illness whose disability is often invisible.
1-20 NIDRR Program Directory FY 2004 - Employment Outcomes

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Development of Materials and Methods Needed to Deliver a Proven Job

Retention Vocational Rehabilitation Intervention

Boston University

School of Medicne

715 Albany Street, Room A203

Boston, MA 02118

sallaire@bu.edu

Principal Investigator: Saralynn J. Allaire, ScD

Public Contact: 617/638-5180; Fax: 617/638-5239

Project Number: H133G040216

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $136,876; FY 05 $111,005

Abstract: The purpose of the project is to maximize the full inclusion of persons with chronic diseases

at risk for work disability into employment and economic self-sufficiency. The project uses the knowledge and understanding obtained from a recently completed research study showing that a job retention vocational rehabilitation (VR) intervention developed for the study reduced job loss in a sample of

employed persons with serious rheumatic diseases. The approach to VR for the target population was

innovative in that its goal was to prevent work disability rather than try to correct it. The specific

intervention was innovative in that it incorporated strategies derived from both research and rehabilitation counseling expertise. The goal of the project is to develop the methods and materials needed by

organizations providing VR services to carry out the intervention tested in the recently completed

research study. Its short-term outcomes are increased ability of counselors to effectively deliver job

retention VR intervention to employed persons with chronic diseases, improved knowledge of how to

inform persons with chronic diseases of the availability of VR services, and increased awareness of the

intervention and the requirements for delivering it. The objectives of the project are as follows: (1) to

produce a Training Manual that contains information and materials needed to train counselors to carry

out the intervention; (2) to produce a User’s Manual that contains the materials needed by counselors

to carry out the intervention; (3) to assess the satisfaction of recipients with the intervention, including

its content; (4) to produce a Recruitment Manual that contains strategy information and materials

needed for reaching the target population; (5) to calculate intervention costs; and (6) to conduct dissemination activities to increase awareness of the value of the intervention and requirements for implementing it.
NIDRR Program Directory FY 2004 - Employment Outcomes 1-21

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Montana

Self-Employment Technology Transfer (SETT)

University of Montana

Rural Institute on Disabilities

52 Corbin Hall

Missoula, MT 59812

nancy@ruralinstitute.umt.edu

http://ruralinstitute.umt.edu

Principal Investigator: Nancy Arnold, PhD

Public Contact: 406/243-2469; Fax: 406/243-2349

Project Number: H133G000189

Start Date: October 01, 2000

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $149,970; FY 01 $149,487; FY 02 $149,986; FY 04 $0 (No-cost extension

through 3/31/2005)

Abstract: The Self-Employment Technology Transfer (SETT) project has developed and field tested a

VR self-employment support model based on extensive research. This project is designed to develop,

demonstrate, and evaluate methods for facilitating the widespread adoption by practicing VR counselors of this empirically derived model of standards and practices in a cost-effective manner and in a

relatively short time. It is estimated that achieving this goal benefits 25,560 to 62,850 consumers of VR

services annually. Further it is believed that such a technology transfer model for disseminating empirically derived social technology from research into practice has the potential to shape the content,

methods, and goals of future disability and rehabilitation research. There has been an explosion of

interest in self-employment for people with disabilities. More than a half-million people with disabilities report owning their own businesses and people with disabilities are nearly twice as likely to be

self-employed as those in the general population. While self-employment is not for everyone, it clearly

is a viable option used by many. Yet, VR agencies nationally help fewer than 2.5 percent of their

consumer achieve self-employment. Research shows that few of the estimated 9,500 practicing VR

counselors have the knowledge or skills to support consumers who choose to pursue self-employment.

Anecdotal reports indicate that VR agencies and staff have a significant interest in developing methods

to respond to this consumer demand. While a few programs have served as models for promoting selfemployment, none are designed specifically for VR counselors or organized for such wide-scale

dissemination.
1-22 NIDRR Program Directory FY 2004 - Employment Outcomes

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oklahoma

Development and Distribution of an Accessible E-Learning Authoring

System Software and Model Course for Vocational Rehabilitation

Services Personnel

University of Oklahoma

National Center for Disability Education and Training

106 Constitution, Building 158

Norman, OK 73072

okbuzzard@ou.edu

Principal Investigator: Martha Buzzard; Rebecca Cook

Public Contact: 405/325-1073; Fax: 405/325-1632

Project Number: H133G030063

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 03 $149,991; FY 04 $149,964; FY 05 $149,938

Abstract: This project develops and distributes two products that improve e-learning accessibility

options and increase employment opportunities for people with severe disabilities. These products

directly benefit two groups: (1) Instructional designers, trainers in government and industry, and

educators receive an accessible e-learning authoring system. This customized authoring tool integrates

Section 508 accessibility standards into an engine that delivers multimedia content from an external

database. User-friendly templates and reusable interactive models have built-in accessibility options,

thus enabling non-programmers to develop accessible courseware with less time and expense. (2)

Vocational rehabilitation services and supported employment personnel receive The Job Development

Hour, an accessible model course on CD-ROM that teaches basic strategies of marketing and job

development for people with severe disabilities.
NIDRR Program Directory FY 2004 - Employment Outcomes 1-23

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Virginia

Strategies People with Psychiatric Disabilities Use to Maintain

Employment and Build Careers

CESSI

6858 Old Dominion Drive

Suite 250

McLean, VA 22101

mkilleen@cox.net

http://www.cessi.net

Principal Investigator: Mary Killeen

Public Contact: 703/619-1703; Fax: 703/619-1702

Project Number: H133G020116

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000

Abstract: This project investigates the strategies individuals with psychiatric disabilities use to maintain employment over time. The majority of individuals with psychiatric disabilities who are working

find their work independently, without the help of specialized employment programs. Little is known

concerning the strategies they use to maintain employment over time. Research that has focused on

psychiatric disability and employment has looked solely at those populations who are currently attending or have attended vocational rehabilitation or specialized employment programs; individuals who

have been most successful at maintaining employment have not been consulted regarding the strategies

that worked best for them. This project explores a number of domains, including: (1) coping with

stigma in the workplace, (2) managing symptoms as well as medications and their side effects, (3)

making decisions regarding disclosure of psychiatric disability in the workplace, (4) negotiating workplace accommodations, (5) developing a social support network, (6) coping with relapse or re-hospitalization with regard to employment, and (7) obtaining education or training (career development). In

addition, the project examines whether those who have found work with the help of professionals and

those who have found work independently use differing strategies to maintain employment. Researchers ascertain the prevalence of various strategies in each group as well as their importance to participants in maintaining employment over time.
1-24 NIDRR Program Directory FY 2004 - Employment Outcomes

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Virginia

Self-Employment Development for Individuals with Traumatic Brain

Injury

Brain Injury Association of America, Inc.

8201 Greensboro Drive, Suite 611

McLean, VA 22102

glauer@biausa.org

http://www.biausa.org

Principal Investigator: Geoffrey Lauer 319/351-7751

Public Contact: 703/761-0750 Fax: 703/761-0751

Project Number: H133G020215

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $149,985; FY 03 $149,965; FY 04 $149,973

Abstract: This project creates self-employment opportunities for individuals with traumatic brain

injuries through inventive, replicable capacity building approaches coupled with high-quality and costeffective technical consultation and program redesign. The research, conducted by the Brain Injury

Association of America and The Rural Institute at the University of Montana, addresses consumer selfdetermination, staff development, dissemination, and capacity building, with significant attention to

consumer choice, minority enrollment, and local collaboration. Staff focus on systemic communitywide capacity building for self-employment, with the assistance of a broad-based culturally, geographically, and disability diverse Advisory Council. Each of the two development communities receives onsite and distance technical training and consultation on business planning, SSA Work Incentives,

financing/alternative funding, and specific supports (assistive/universal technology, self-management

regimens, etc.) for individuals with TBI. The project builds capacity with local community rehabilitation programs, VR and Work Force Investment Act offices, medical providers, families, self-advocates,

economic development entities including business incubators and Small Business Development Centers, and Tribal Business Information Centers.
NIDRR Program Directory FY 2004 - Employment Outcomes 1-25

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Virginia

Telework as an Accommodation for Employees with Disabilities:

Developing Prediction Models for Successful and Satisfying Careers

Virginia Commonwealth University

P.O. Box 980568

Richmond, VA 23284

mwest@mail1.vcu.edu

http://www.worksupport.com

Principal Investigator: Michael West, PhD

Public Contact: 804/828-1851; Fax: 804/828-2193

Project Number: H133G020158

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $149,998; FY 03 $149,996; FY 04 $149,998

Abstract: This three-year project develops research models to predict successful entry or reentry into

employment using telework options. The models include: (1) functional, demographic, and experiential

characteristics of participants; (2) telework options, such as telecenters, home-based work, and combinations of home- and office-based duties; (3) types of work performed, such as telephone or on-line

technical support, telemarketing, remote data entry, writing, reservations, etc.; (4) support and training

provided by the employer and public and private agencies; and (5) monetary factors such as earnings

and fringe benefits. “Success” is defined in terms of both sustained labor force involvement and

satisfaction with one’s job, earnings, benefits, and career path.

Contents

Rehabilitation Research and Training Centers (RRTCs) ............................................................................ 3

Disability and Rehabilitation Research Projects ...................................................................................... 13

Model Spinal Cord Injury Systems........................................................................................................ 41

Field Initiated Projects (FIPs) ............................................................................................................... 57

Small Business Innovative Research (SBIR), Phase II ............................................................................ 90

Health and Function

NIDRR’s research focus for health and function addresses problems in individual care,

services, and supports for people with disabilities. Research topics include: medical

rehabilitation; health and wellness programs; service delivery; short and long-term

interventions; systems research; and new and emerging disabilities.

NIDRR Program Directory FY 2004 - Health and Function 2-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center in Neuromuscular

Diseases (RRTC/NMD)

University of California, Davis

Department of Physical Medicine and Rehabilitation (T1B191)

School of Medicine

1 Shields Avenue

Davis, CA 95616

nmdinfo@ucdavis.edu

http://www.nmdinfo.net

Principal Investigator: Craig McDonald, MD

Public Contact: Sandy Walsh, Coordinator of Information Services 530/752-3447; Fax: 530/753-

3468

Project Number: H133B031118

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000

Abstract: The purpose of the Rehabilitation Research and Training Center in Neuromuscular Diseases

(RRTC/NMD) is to enhance the health, function, and quality of lives of persons with neuromuscular

diseases (NMD). The goals of this project are to: (1) develop a program for multicenter rehabilitation

research in NMD through the Cooperative International Neuromuscular Research Group (CINRG);

(2) conduct research that continues to address rehabilitation needs, particularly related to exercise,

nutrition, pain, secondary conditions, and the quality of life of individuals with neuromuscular diseases; (3) develop and evaluate new or emerging technologies and interventions that provide the

information needed to improve employment, community integration, and quality of life outcomes for

this population of individuals with disabilities; (4) develop and evaluate appropriate health promotion

and wellness programs that enhance the ability of individuals with neuromuscular disease to be physically active and participate in recreational activities; and (5) conduct a comprehensive program of

training, dissemination, utilization, and technical assistance activities that are well-anchored in the

research program and address the needs of stakeholders.
2-4 NIDRR Program Directory FY 2004 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Aging-Related Changes in Impairment for Persons Living with Physical

Disabilities

Los Amigos Research & Education Institute, Inc.

7601 East Imperial Highway; 800 West Annex

Downey, CA 90242

lcarrothers@agingwithdisability.org

http://www.agingwithdisability.org

Principal Investigator: Bryan J. Kemp, PhD

Public Contact: LeeAnn Carrothers, PT, PhD, Training Director 562/401-7402; Fax: 562/401-7011

Project Number: H133B031002

Start Date: August 01, 2003

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 03 $700,000; FY 04 $700,000; FY 05 $700,000

Abstract: This project is a combined effort of Rancho Los Amigos National Rehabilitation Center and

the University of California at Irvine, with other collaborators including the Center for Disability in the

Health Professions at Western University and two Rehabilitation Engineering Research Centers. This

project evolves from the fact that persons who have a disability are now living into middle age and late

life in ever-increasing numbers. However, many of these people appear to be experiencing premature

age-related changes in health and functioning. The project tests a model for improved understanding of

these problems and interventions to help alleviate them. Persons who aree: experiencing these kinds of

problems and their families are included in all center projects. The training, dissemination, and technical assistance activities include clinical training of current and future health providers, current and

future researchers, persons with disabilities, their families, and policy makers. Both traditional methods

of one-on-one and group training as well as technology-based distance training techniques are used to

reach national audiences and under-served poplulations.
NIDRR Program Directory FY 2004 - Health and Function 2-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

The Consortium for Children and Youth with Disabilities and Special

Health Care Needs.

Georgetown University

Center for Child and Human Development

3307 M Street Northwest, Suite 401

Washington, DC 20007

nrrtc@georgetown.edu

http://www.consortiumnrrtc.org

Principal Investigator: Phyllis Magrab, PhD

Public Contact: Tammy Abdou, Program Coordinator 202/687-8617 (V); 202/687-5503 (TTY); Fax:

202/687-8899

Project Number: H133B001200

Start Date: July 01, 2000

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 00 $699,956; FY 01 $699,947; FY 02 $699,926; FY 03 $699,981; FY 04

$699,983

Abstract: The Consortium improves rehabilitation outcomes for children and youth with disabilities

and special health care needs by increasing the effectiveness of service system. Using an integrated,

multifaceted research approach and related training, dissemination, and technical assistance activities,

the Consortium targets five areas: (1) access issues in pediatric rehabilitation, (2) characteristics of

health plans and access to services, (3) promising practices in transition from pediatric to adult health

care, (4) effective telehealth strategies for interdisciplinary service delivery in remote areas, and (5)

training issues in Assistive Technology. Building on this research program, the consortium utilizes a

variety of strategies to provide training and technical assistance to the target audience of families,

consumers, providers, researchers, policymakers, and managed care organizations to improve rehabilitative services to this population in order to enhance their quality of life and that of their families. The

RRTC is run buy the Georgetown Universitype:’s Center for Child and Human Development in

collaboration with Brandeis University’s Heller School, the University of Florida’s Institute of Child

Health Policy, and Family Voices.
2-6 NIDRR Program Directory FY 2004 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

District of Columbia

Access to Rehabilitation and Empowerment Opportunities for Minority

Persons with Disabilities

Howard University

2900 Van Ness Street Northwest

Holy Cross, Room 100

Washington, DC 20008

whoward@howard.edu

http://www.law.howard.edu/HURTC/HURTC.html

Principal Investigator: Dr. M. Gerlene Ross.

Public Contact: 202/806-8086; Fax: 202/806-8148

Project Number: H133B000903

Start Date: October 01, 2000

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 00 $600,000; FY 01 $600,000; FY 02 $600,000; FY 03 $600,000; FY 04

$600,000

Other Funding: FY 01 $39,375 (NIDRR)

Abstract: The Howard University Research and Training Center for Access to Rehabilitation and

Empowerment Opportunity (HURTC) is implementing a RRTC on Access to Rehabilitation and

Empowerment Opportunities for Minority Persons with Disabilities to help them achieve self-determination, economic independence, and full participation in American life. The program of the Center is

designed to attain the following objectives: identify methodological problems determining the rehabilitation needs of persons with disabilities from minority backgrounds (including sub-populations within

these groups) and propose strategies to address these methodological problems; based on research

findings, identify implications for rehabilitation research, training, policy development, and services;

assess the outcomes of rehabilitation for persons with disabilities from minority backgrounds as measured by two or more variables (such as functional abilities, wellness, employment, health/wellness,

and psychosocial status); analyze the affects of minority status on rehabilitation outcomes; and identify,

develop, and evaluate rehabilitation methodologies, models, and interventions for specific minority

groups. The HURTC collaborates with the Center for Disease Control, the Center for Minority Health,

and a variety of stakeholders including consumers with disabilities, state agencies, continuing education programs, and community-based organizations.
NIDRR Program Directory FY 2004 - Health and Function 2-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

RRTC on Technology Promoting Integration for Stroke Survivors:

Overcoming Social Barriers

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611

ejr@northwestern.edu

http://www.rrtc-stroke.org/

Principal Investigator: Elliot J. Roth, MD 312/238-4637

Public Contact: Linda Lovell, Project Coordinator 312/238-6197; Fax: 312/238-6998

Project Number: H133B031127

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000

Abstract: This project develops and evaluates a sequence of robotic training and assistive devices that

are designed with the idea of promoting efficient function in the workplace or at home, and with the

further intent that they form a basis for the development of appropriate technologies to allow people

with disabilities ready access to existing facilities in the community. At each stage the project engages

engineering students as a means to provide intensive effort for development of novel designs, but also

to provide valuable opportunities for training students in the themes related to recovery of function and

community integration of people with disabilities. Other projects at this center include: the use of

emotionally expressive and narrative writing to facilitate coping and adaptation after stroke; computerized training for conversational scripts that facilitate access to the community and work force; and a

consumer-directed, dynamic assessment methodology for evaluating community living and work

participation environments and technologies for use by people who have had a stroke. In addition to

these projects, the RRTC develops and evaluates a comprehensive plan for training directed to stroke

survivors and their families, students, researchers, clinicians, and service providers. These approaches

are implemented through a variety of mechanisms, including continuing education courses, web-based

presentations, and intensive training in our research facilities.
2-8 NIDRR Program Directory FY 2004 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Maryland

Rehabilitation Research and Training Center on Secondary Prevention

Through Exercise: A Participatory Approach for People with Spinal

Cord Injury

National Rehabilitation Hospital/MedStar Research Institute

102 Irving Street, NW

Washington, DC 20010

TBA

http://www.sci-health.org

Principal Investigator: Suzanne L. Groah, MD 202/877-1156

Public Contact: Melinda Neri, Project Coordinator, National Rehabilitation Hospital Center for

Health and Disability Research, 1016 16th Street, NW, Suite 400, Washington, DC 20036-5750

202/466-0092; Fax: 202/466-1911

Project Number: H133B031114

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000

Abstract: This project systematically and comprehensively addresses the role and impact of physical

activity in the prevention of secondary conditions in people with spinal cord injury (SCI). Initially, the

project establishes critical, yet-undefined physiological responses to exercise in SCI and comprehensively examines cardiovascular disease risk in individuals with SCI applying accepted guidelines used

in the able-bodied population. The project develops exercise formats specifically designed according to

severity of SCI and chronicity of SCI to address the prevention of and knowledge regarding osteoporosis and other secondary conditions. In addition, the project determines whether regular exercise

is related to fewer secondary conditions. These research findings feed into four training activities that

include a peer mentoring program for newly injured people with SCI, a consumer-driven education

curriculum for physical therapy and medical students, a state-of-science and training conference, and

the development of a virtual resource network on exercise and prevention. The RRTC is a collaborative effort of clinical and disability researchers, SCI consumer organizations, and independent living

advocates ̃
NIDRR Program Directory FY 2004 - Health and Function 2-9

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Missouri

Missouri Arthritis Rehabilitation Research and Training Center

(MARRTC)

University of Missouri

Physical Medicine and Rehabilitation

One Hospital Drive, DC330.00

Columbia, MO 65212

holtmeyerk@health.missouri.edu

http://www.muhealth.org/~arthritis

Principal Investigator: Jerry C. Parker, PhD

Public Contact: Kim Holtmeyer 573/884-1499; Fax: 573/884-3020

Project Number: H133B031120

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000

Abstract: The purpose of the Missouri Arthritis Rehabilitation Research and Training Center

(MARRTC) is to provide leadership at the national level in support of three key objectives: to reduce

pain and disability, to improve physical fitness and quality of life, and to promote independent living

and community integration for persons with arthritis of all ages in the United States. State-of-thescience rehabilitation research addresses the needs of persons with arthritis in the following areas: (1)

home and community-based self-management programs, (2) benefits of exercise and physical fitness,

and (3) technologies available to the broad populations of persons with arthritis in the environments

where they live, learn, work, and play. The MARRTC conducts training and capacity-building programs for critical stakeholders within the arthritis disability arena, including consumers, family members, service providers, and policy makers. Additionally, the MARRTC provides technical assistance

for persons with arthritis and other stakeholders in order to promote utilization of arthritis-related

disability research. The MARRTC also provides widespread dissemination of informational materials

to persons with disabilities, their representatives, service providers, and other target audiences (e.g.,

editors and reporters).
2-10 NIDRR Program Directory FY 2004 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center on Health and Wellness in

Long Term Disability

Oregon Health and Science University

Oregon Institute on Disability and Development

Child Development and Rehabilitation Center

707 Southwest Gaines; P.O. Box 574

Portland, OR 97207-0574

rrtc@ohsu.edu

http://www.healthwellness.org

Principal Investigator: Gloria Krahn, PhD, MPH 503/494-8364

Public Contact: Laura Hammond, Center Coordinator 503/494-3882; Fax: 503/494-6868

Project Number: H133B040034

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $700,000; FY 05 $700,000

Abstract:The vision of the RRTC is to contribute to the reduction of health disparities for person with

disabilities through an integrated program of research, training, technical assistance, and dissemination.

The Center has three inter-related strands of work to address its three intended outcomes/goals: (1)

Identify strategies to overcome barriers that impede access to routine healthcare for individuals with

disabilities; (2) identify interventions in areas such as exercise, nutrition, pain management, or complementary and alternative therapies that promote health and wellness and minimize the occurrence of

secondary conditions for persons with disabilities; and (3) develop improved status measurement

tool(s) to assess health and well-being of individuals with disabilities regardless of functional ability. In

order to achieve these outcomes, the RRTC conducts a coordinated program of research and training

activities using a logic model framework. RRTC projects summarize and validate existing research

findings on barriers to health care access as well as rigorously test and compare new strategies to

overcoming identified barriers. The RRTC also examines and evaluates the practices of exemplary

generic and specialized health promotion programs for people with disabilities in order to create an

evidence-based set of evaluation and planning criteria. In addition, the RRTC organizes and uses

panels to assess current health status measurement tools and develops or refines measures to more

accurately reflect the health and well-being of people living with disabilities. Throughout these activities the RRTC disseminates informational materials and provide technical assistance to individuals with

disabilities, their representatives, providers, and other interested parties.
NIDRR Program Directory FY 2004 - Health and Function 2-11

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Texas

Rehabilitation Research and Training Center on Rehabilitation

Interventions Following Traumatic Brain Injury

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

1333 Moursund Avenue

Houston, TX 77030-3498

whigh@bcm.tmc.edu

http://www.braininjuryresearch.org

Principal Investigator: Walter M. High Jr., PhD

Public Contact: 713/666-9550; Fax: 713/668-5210

Project Number: H133B990014

Start Date: September 01, 1999

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 99 $650,000; FY 00 $650,000; FY 01 $650,000; FY 02 $650,000; FY 03

$650,000; FY 04 $0 (No-cost extension through 12/31/2004)

Abstract: The Center promotes the scientific advancement of rehabilitation research by focusing on

several areas identified as needing further research. These include areas of weakness in the current

knowledge and future research regarding TBI recovery and rehabilitation effectiveness: improvement

of the diagnosis and treatment of persons with mild TBI; development of interventions to assist schoolage children with TBI; the needs of minority groups members with TBI; evaluation of the effectiveness

of rehabilitation interventions; and treatment for the family members of people with TBI. Activities

include publishing an informational and technical assistance resource for consumers and professionals;

training for medical and neuropsychological fellows in rehabilitation research; coordinating a state-ofthe-science conference on mild TBI; and producing an educational videotape to train family members

in effective coping skills. Through representation on the advisory committees, consumers are involved

in all aspects of planning and evaluating research and training activities.
2-12 NIDRR Program Directory FY 2004 - Health and Function

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Washington

Multiple Sclerosis Rehabilitation Research and Training Center

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98105

msrrtc@u.washington.edu

http://www.msrrtc.washington.edu

Principal Investigator: George H. Kraft, MD 206/543-7272

Public Contact: 888/634-6778; 206/221-5302; Fax: 206/685-3244

Project Number: H133B031129

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $800,000; FY 04 $800,000; FY 05 $800,000

Abstract: This center conducts rehabilitation research that: (1) Develops new interventions and

practice in the areas of disease suppression, strength enhancement, preserving employment, depression

management, and pain control; (2) collects data from an extensitve survey and explores complex

interactions among multiple variables, models factors that predict differing levels of participation by

people with MS, and proposes points of intervention that modify changes in function; and (3) facilitates enhanced participation through training, technical assistance, and dissemination through professional meetings, publications, and a State-of-the-Science conference. In addition, a web-based

knowledgebase provides technical assistance to individuals with MS and healthcare providers with

respect to caregiver issues, financial and insurance planning, self-sufficiency and coping, and assistive

technology.
NIDRR Program Directory FY 2004 - Health and Function 2-13

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Alabama

UAB TBI Model System

University of Alabama/Birmingham

Spain Rehabilitation Center

Physical Medicine and Rehabilitation

619 - 19th Street South, SRC529

Birmingham, AL 35249-7330

novack@uab.edu

http://www.uab.edu/tbi

Principal Investigator: Thomas A. Novack, PhD

Public Contact: Pamela K. Mott 205/934-3283

Project Number: H133A020509

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: The University of Alabama at Birmingham (UAB) is maintaining and further developing a

Traumatic Brain Injury Model System (TBIMS) that improves rehabilitation services and outcomes for

persons with TBI. This project provides a multidisciplinary system of rehabilitation care specifically

designed to meet the needs of individuals with TBI, and, as demonstrated over the past four years as a

TBIMS, adequately enrolls subjects to complete research projects successfully. In addition to contributing data to the TBI National Database, the UAB TBIMS conducts two research projects: (1) an

examination of the use of a serotonin agonist medication (sertraline) to lessen the incidence and severity of depression during the first year of recovery following TBI; (2) a study of the impact of a training

program in problems solving for caregivers.
2-14 NIDRR Program Directory FY 2004 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Northern California Traumatic Brain Injury Model System of Care

Santa Clara Valley Medical Center (SCVMC)

Rehabilitation Research Center

751 South Bascom Avenue

San Jose, CA 95128

jerry.wright@hhs.co.scl.ca.us

http://www.tbi-sci.org

Principal Investigator: Tamara Bushnik, PhD

Public Contact: 408/793-6433; Fax: 408/793-6434

Project Number: H133A020524

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $364,038; FY 03 $364,588; FY 04 $364,745; FY 05 $364,956

Abstract: This project conducts two studies to better characterize the type and impact of fatigue on the

TBI population: (1) a cross-sectional study of people up to ten years post-TBI and (2) a longitudinal

study that focuses on the evolution of fatigue over the first two years post-injury. Both studies utilize

standardized measurements of fatigue, as well as those for depression/affective disorders, sleep disturbance, activity scales, and measurements of hormone levels reflective of the health of the neuroendocrine system. Two additional studies characterize the impact of late posttraumatic seizures on recovery:

(1) a study utilizing data already in the TBIMS National Database that compares the functional, vocational, and medical complication outcomes of those with and without late posttraumatic seizures; (2) a

study in collaboration with Denver Hospital Medical Center that interviews individuals at both sites

who participated in a previously funded NIDRR grant on seizure risk identification. This study further

evaluates barriers to the environment, transportation, and challenges in control of their seizures.
NIDRR Program Directory FY 2004 - Health and Function 2-15

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

UCHSC Burn Model System Data Coordination Center (BMS/DCC)

University of Colorado Health Sciences Center

School of Medicine

Department of Preventive Medicine and Biometrics

4200 East Ninth Avenue, Box B119

Denver, CO 80262

rebecca.sloan@uchsc.edu

http://bms-dcc.uchsc.edu

Principal Investigator: Dennis C. Lezotte, PhD 303/315-6873

Public Contact: Rebecca Sloan, Project Coordinator 303/315-0320; Fax: 303/315-3183

Project Number: H133A020402

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $249,997; FY 03 $249,995; FY 04 $249,997; FY 05 $249,999

Abstract: The BMS/DCC establishes a data management and analytical support facility for Burn

Model Systems clinical and outcomes research projects. Objectives include: (1) to serve the clinical,

research, and public communities to which it is responsible; (2) to serve the needs of good scientific

procedure in multi-institutional outcomes research; and (3) to support the needs for patient safety and

data confidentiality as required by Federal regulations when conducting collaborative clinical studies.

The BMS Project is structured as a set of interacting, observational, randomized, and quasi-experimental clinical studies run at different centers that share the common purpose of acquiring and disseminating knowledge about burn injury care and rehabilitation. The project offers support in four important

areas: project management, data management, analytical support, and dissemination. Support is provided in developing appropriate integrated systems to affect national data collection, project management, data coordination, technical support, collaborative clinical projects, scientific conduct, scientific

publication, and effective dissemination. The UCHSC BMS/DCC continues to accumulate and integrate a central repository of data from the Model Systems to enhance their abilities to make sentinel

statements and change the way burn injury rehabilitation is done. While the main function of the DCC

is to integrate and manage these data, it also needs to be responsive to the technical and analytical

needs of these individual clinical centers. In addition the DCC provides and coordinates statistical

support among the clinical and statistical groups from each Burn Center and is prepared to expand this

support, adding several new protocols and/or clinical studies where appropriate.
2-16 NIDRR Program Directory FY 2004 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

Lifetime Outcomes and Needs: Refining the Understanding of Aging

with Spinal Cord Injury

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

susie@craighospital.org

http://www.craighospital.org

Principal Investigator: Daniel P. Lammertse, MD 303/789-8220

Public Contact: Susan B. Charlifue, PhD 303/789-8306; Fax: 303/789-8441

Project Number: H133A011108

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $350,000; FY 02 $350,000; FY 03 $350,000; FY 04 $350,000; FY 05

$350,000

Abstract: This project explores the incidence and prevalence of several health and psychosocial

conditions that accompany living many years with SCI. Also studied in this comprehensive, longitudinal, multicenter effort are the services available to individuals with SCI as they attempt to address these

conditions throughout their lives. The study expands the longitudinal database, addressing emerging

issues of aging with SCI in greater detail, and expands efforts to share findings with a variety of

constituents. The eight areas of focus include: (1) secondary conditions from five to 25 years postinjury, (2) new analytic techniques with longitudinal datasets, (3) chronic pain, (4) access to and

satisfaction with health services, (5) personal assistance services, (6) spirituality and its effects on

health outcomes and quality of life, (7) the role of perceived stress and self-reported problems on the

presence or absence of secondary conditions and in relation to one’s overall well-being, and (8) trends

in quality of life and health. This longitudinal study builds on two previous data collection points. It

includes a broad, comprehensive examination of secondary conditions, both physical and psychosocial, and several new areas of inquiry investigated in-depth.
NIDRR Program Directory FY 2004 - Health and Function 2-17

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Colorado

The Rocky Mountain Regional Brain Injury System (RMRBIS)

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

charrison-felix@craighospital.org

http://www.craighospital.org

Principal Investigator: Gale G. Whiteneck, PhD 303/789-8204

Public Contact: Cynthia Harrison-Felix, PhD 303/789-8565; Fax: 303/789-8441

Project Number: H133A020510

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: The Rocky Mountain Regional Brain Injury System (RMRBIS) conducts three research

projects: Study 1 examines the effects of Modafinil on fatigue and excessive sleepiness after TBI.

Study 2 assesses the effectiveness of a group therapy intervention for social pragmatic communication.

Study 3 uses the unique database assets of Craig Hospital and investigates the environmental and

clinical factors that influence outcome over a 40-year time frame to understand the process of living

and aging with a TBI. In addition to clinical research and service, Craig Hospital, as the RMRBIS,

documents an outstanding record of dissemination, for all customers including clinical consumers,

community agencies and advocacy groups, other clinical service centers and systems, and professionals engaged in the treatment of persons with TBI.
2-18 NIDRR Program Directory FY 2004 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Florida

Pharmacological Management of Dyslipidemia and Cardiovascular

Disease in Persons with Chronic Cervical SCI: A Multicenter

Collaborative Trial

University of Miami

School of Medicine

1095 Northwest 14th Terrace, R48

Miami, FL 33136

msnash@miami.edu

http://www.miamiproject.miami.edu

Principal Investigator: Mark S. Nash, PhD 305/243-3628

Public Contact: Maria Amadore, Directory of Education, Miami Project to Cure Paralysis 305/243-

7108

Project Number: H133A011115

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $344,023; FY 02 $340,953; FY 03 $271,952; FY 04 $0 (No-cost extension

through 9/30/2005)

Abstract: This project researches strategies that reduce cardiovascular disease risks after onset of

tetraplegia by increasing high-density lipoprotein cholesterol (HDL-C) levels. The research examines

the ability of a pharmaceutical therapy to improve the lipid profiles and forestall cardiovascular disease

progression in persons with tetraplegia. Previous research on persons without SCI has shown extended-release niacin effective for elevating HDL-C, lowering total cholesterol, lowering low-density

lipoprotein cholesterol (LDL-C), lowering triglycerides, slowing cardiovascular disease progression,

and reducing cardiovascular morbidity and mortality. The ability of this drug to improve lipid profiles

has never been examined in persons with tetraplegia, although drug benefits similar to those reported in

persons without SCI would be of great health benefit to those with tetraplegia.
NIDRR Program Directory FY 2004 - Health and Function 2-19

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Health Services Research DRRP on Medical Rehabilitation

Northwestern University

Rehabilitation Institute Research Corporations

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611-2654

a-heinemann@northwestern.edu

http://www.ric.org/research/outcomes/drrp.php

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-2383

Project Number: H133A030807

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 03 $300,000; FY 04 $300,000; FY 05 $300,000

Abstract: This research addresses the need to improve the delivery of health services to persons with

disabilities by (1) evaluating the impact of Medicare’s inpatient rehabilitation facilities’ (IRF) prospective payment system (PPS) on access to rehabilitation services in terms of settings, services, and length

of stay; and (2) identifying the impact of comorbidities on how patients are classified and reimbursed

under the new IRF PPS. Medicare’s new PPS for IRF may limit effective access to care because

facilities will take fewer risks with patients deemed to be “high cost outliners,” hire more “therapy

extenders” rather than licensed professionals, and discharge patients at a higher rate to nursing facilities

rather than to community settings. The four specific aims of the research are to: (1) examine changes in

the organization of medical rehabilitation services in response to prospective payment; (2) examine

changes in patient access to medical rehabilitation settings and services resulting from organizational

responses to the change in reimbursement; (3) examine the impact of PPS-related changes in service

delivery on patient outcomes; and (4) identify the impact of comorbidities on classification and reimbursement in medical rehabilitation PPS.
2-20 NIDRR Program Directory FY 2004 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Maryland

Johns Hopkins University Burn Injury Rehabilitation Model System

(JHU-BIRMS)

Baltimore Regional Burn Center

Johns Hopkins Bayview Medical Center

4940 Eastern Avenue

Baltimore, MD 21224

jfauerba@jhmi.edu

http://www.jhbmc.jhu.edu/brbc/birms

Principal Investigator: James A. Fauerbach, PhD 410/550-0894

Public Contact: Bernadette Guthrie 410/550-5298; Fax: 410/550-8161

Project Number: H133A020101

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $298,928; FY 03 $299,995; FY 04 $299,753; FY 05 $298,311

Abstract: This project tests interventions targeting three common postburn secondary complications

affecting health and function: generalized deconditioning, muscle atrophy, and acute stress disorder.

Testing the effectiveness of these interventions holds promise for improving the health and function of

burn survivors as well as enhancing their options for workplace and community reintegration. The

JHU-BIRMS includes several projects: (1) testing the efficacy of its augmented exercise program in

rehabilitating people with generalized deconditioning, (2) testing the efficacy of enhanced cognitivebehavioral therapy in treating individuals with acute stress disorder and preventing the development of

chronic posttraumatic stress disorder, (3) developing a new measure that quantifies the degree of social

stigmatization experienced by burn survivors and its impact on emotional adjustment and integration

into the workplace and the community (this project involves the Phoenix Society, the largest foundation supporting burn survivors and their significant others), (4) a collaborative effort with the University of Washington on a workplace integration study identifying and quantifying those factors interfering with early and complete return to work, and (5) a collaborative study on health and function with

the University of Texas.
NIDRR Program Directory FY 2004 - Health and Function 2-21

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Maryland

Medicaid Quality Indicators for Individuals with Disabilities

National Rehabilitation Hospital/MRI

102 Irving Street NW

Washington, DC 20010

susan.e.palsbo@medstar.net

http://www.nrhchdr.org

Principal Investigator: Susan E. Palsbo, PhD

Public Contact: 202/466-1904; Fax: 202/466-1911

Project Number: H133A030804

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 03 $300,000; FY 04 $299,999; FY 05 $299,999

Abstract: This project develops and validates health service quality indicators for people with disabilities. The target population to be served is people with disabilities enrolled in managed Medicaid

programs. The goal is to develop and field test quality measures for people with disabilities in managed

care organizations. The specific aims are: (1) Case Identification: Improve the computer algorithm for

Medicaid plans to identify beneficiaries who have disabilities. (2) Plan-reported indicators: Select a

subset of existing HEDIS Medicaid measures that are appropriate and statistically meaningful for

indicating the quality of care for the people identified in Aim#1. (3) Consumer-reported indicators:

Assess the content validity of the Axis-CAHPS survey. (4) Develop comparative reporting tools of the

quality of care between and within health plans. This is a combined qualitative and quantitative study

with three interrelated segments. (1) Extend previous research on using routine health claims data to

identify beneficiaries who are at risk of needing modified help to access their Medicaid benefits and

services. (2) Review and refine the two most widely used Medicaid quality indicator tools, CAHPS

and HEDIS; and extend work on refining the CAHPS instrument for people with physical disabilities;

and (3) Explore how people with disabilities, payers, and providers can use the indicators to improve

practice and report outcomes using comparative reporting tools.
2-22 NIDRR Program Directory FY 2004 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

The Spaulding/Partners TBI Model System at Harvard Medical School

Spaulding Rehabilitation Hospital

125 Nashua Street

Boston, MA 02114

toneilpi@lynx.dac.neu.edu

http://spauldingrehab.org/home/ed_research/index.htm

Principal Investigator: Mel B. Glenn, MD 617/573-2625

Public Contact: Therese O’Neil-Pirozzi, ScD 617/573-2456; Fax: 617/573-2469

Project Number: H133A020513

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: The Spaulding TBI Model System (TBIMS) provides a comprehensive spectrum of care for

people with TBI through the collaborative efforts of three hospitals that are part of Partners Health

Care System, Inc., and four organizations that operate a variety of postacute rehabilitation programs.

Research at the center includes development of functional neuroimaging as a tool to guide cognitive

rehabilitation treatment for people with TBI, and use of functional magnetic resonance imaging

(fMRI), with both a cross-sectional and longitudinal component. The cross-sectional component

assesses regional brain activation during the memorization of word lists, both under undirected (spontaneous) conditions and following training and cueing to use a categorization strategy. The longitudinal

component studies the ability of the fMRI findings to predict outcome among people with TBI who

participate in community integration program with a cognitive rehabilitation focus.
NIDRR Program Directory FY 2004 - Health and Function 2-23

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Michigan

Southeastern Michigan Traumatic Brain Injury System (SEMTBIS)

Wayne State University and Rehabilitation Institute of Michigan

Department of Physical Medicine and Rehabilitation

261 Mack Boulevard

Detroit, MI 48201

rhanks@dmc.org

http://www.semtbis.org

Principal Investigator: Robin A. Hanks, PhD 313/745-9763

Public Contact: Deborah Wood 313/745-1188; Fax: 313/966-7502

Project Number: H133A020515

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $364,996; FY 03 $364,995; FY 04 $364,997; FY 05 $364,992

Abstract: The Southeastern Michigan Tramatic Brain Injury System (SEMTBIS) program conducts

projects developed with the help of SEMTBIS consumers, as well as other members of the Detroit

community. Three studies evaluate: (1) a peer-mentoring intervention, (2) a dynamic system of survivor and significant-other well-being, and (3) resumption of driving after brain injury. Study 1 is a

randomized controlled trial of a peer-mentoring program for both survivors and their caregivers. Study

2 studies 250 community-dwelling adults with TBI and their caregivers/significant others, exploring

the relationship of survivor-caregiver situations with survivor distress and family dysfunction. It also

studies whether or not social support acts as a moderating influence upon the well-being of persons

with TBI. Study 3 examines correlates of driving after brain injury: barriers, fitness to drive, and

community rapport. Participatory action is a central component of project implementation, evaluation,

and dissemination. SEMTBIS participates in clinical and systems analysis studies of the TBI Model

Systems by collecting and contributing data to the uniform, standardized national database.
2-24 NIDRR Program Directory FY 2004 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Minnesota

Mayo Clinic Traumatic Brain Injury Model System

Mayo Medical Center

200 First Street

Rochester, MN 55905

malec.james@mayo.edu

http://www.mayo.edu/model-system

Principal Investigator: James F. Malec, PhD

Public Contact: Anne Moessner 507/255-3116; Fax: 507/255-7696

Project Number: H133A020507

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 02 $364,891; FY 03 $364,738; FY 04 $363,786; FY 05 $364,993

Abstract: This Traumatic Brain Injury Model System (TBIMS) focuses on three local research

projects: (1) decision-making and outcomes of inpatient and outpatient rehabilitation pathways, (2)

very-long-term (5-15+ years postinjury) process and outcome for people with TBI, identified through

the Rochester Epidemiology Project, and (3) telehealth-based (Internet) cognitive rehabilitation.

Telehealth is a potentially important innovation in this system’s region, where distance limits access to

medical and rehabilitation services and many consumers have limited access to health care, insurance,

employment, and viable political representation. In addition to professional publications and presentations, continuing dissemination efforts include the Mayo Clinic TBIMS website, the TBI Hotline, the

Messenger newsletter, contributions to the COMBI web site and COMBI and TBIMS newsletters, and

regular participation by Mayo Clinic TBIMS staff at all annual state brain injury association meetings

in the extended five-state geographical region. During the next five years, the project plans to develop

an advocacy training program to help people with TBI and their families and significant others in the

region learn self-advocacy skills. Members of the Mayo TBI Regional Advisory Council were

proactively involved in developing this project.
NIDRR Program Directory FY 2004 - Health and Function 2-25

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Mississippi

Traumatic Brain Injury Model System of Mississippi (TBIMSM)

Methodist Rehabilitation Center

Brain Injury Program

1350 East Woodrow Wilson Center

Jackson, MS 39216

marks@mmrcrehab.org

http://www.mmrcrehab.org

Principal Investigator: Mark Sherer, PhD, ABPP-Cn

Public Contact: 601/364-3448; Fax: 601/364-3558

Project Number: H133A020514

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: The TBI Model System of Mississippi (TBIMSM) is a collaborative project of Methodist

Rehabilitation Center and the University of Mississippi Medical Center. This project involves three

studies. The first study investigates two medications in a parallel group, double blind, placebo controlled, randomized assignment design. The drugs under investigation have differing neurotransmitter

effects, although each drug has been reported to have therapeutic benefit. The target population for this

study is persons with TBI who are in a state of posttraumatic confusional state (PCS). This is considered a state-of-the-art approach to PCS given the severe lack of controlled research to measure medication usage in PCS. The second study develops and conducts a trial of an intervention to improve the

therapeutic alliances between persons with TBI and family members and professional staff serving

persons with TBI in a post-acute brain injury neurorehabilitation program (PABIR). The third research

project investigates the use of transcranial magnetic stimulation (TMS) to improve the characterization

of motor disorders after TBI. Current research suggests that improved use and better understanding of

TMS technology will lead to new intervention trials to improve motor function after TBI.
2-26 NIDRR Program Directory FY 2004 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Jersey

JFK-Johnson Rehabilitation Institute TBI Model System

JFK Johnson Rehabilitation Institute

2048 Oak Tree Road

Edison, NJ 08820

kcicerone@solarishs.org

http://www.njrehab.org/tbims

Principal Investigator: Keith D. Cicerone, PhD

Public Contact: 732/906-2640; Fax: 732/906-9241

Project Number: H133A020518

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: This project implements and evaluates innovative rehabilitation interventions that address

the spectrum of severity and needs of persons with TBI. The first research study investigates the

relationship between neurobehavioral (i.e., standardized rating scale) and neurophysiologic (i.e.,

functional MRI data) indices of brain function in persons with traumatic minimally conscious state

(MCS). The second study addresses current clinical and methodological concerns over the effectiveness of cognitive rehabilitation on cognitive functioning, community integration and social participation, return to school and work, and quality of life after traumatic brain injury. The third study uses

qualitative inquiry to describe the quality of life after TBI from the perspective of persons at various

stages after their injuries. These findings are triangulated with quantitative indices of community

integration and satisfaction with functioning, which should provide a richer and more authentic understanding of what it takes to live a fulfilling life after traumatic brain injury.
NIDRR Program Directory FY 2004 - Health and Function 2-27

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Jersey

A Multicenter Prospective Randomized Controlled Trial of the

Effectiveness of Amantadine Hydrochloride in Promoting Recovery of

Function Following Severe Traumatic Brain Injury

JFK Johnson Rehabilitation Institute

Center for Head Injuries

2048 Oak Tree Road

Edison, NJ 08820

Principal Investigator: Joseph T. Giacino, PhD

Public Contact: 732/205-1461; Fax: 732/632-1584

Project Number: H133A031713

Start Date: January 01, 2004

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 03 $599,862; FY 04 $599,994; FY 05 $599,994

Abstract: In this study, eight facilities (three of which are also Traumatic Brain Injury (TBI) Model

Systems), join with a Data Coordinating Center at Columbia University, to conduct a prospective

double blind randomized controlled trial of amantadine. More than 180 patients who remain in vegetative state (VS) or minimally conscious state (MCS) 4-16 weeks post-TBI are randomized in a stratified

fashion to 4 weeks of amantadine (200-400 mg/day) vs. placebo, followed by a 2-week washout

period. The Disability Rating Scale is the primary dependent variable with the Coma Recovery ScaleRevised serving as a supplementary measure. The project also explores whether treatment response

differs by time post-injury and by diagnosis (i.e., VS or MCS) at treatment onset, and whether specific

outcomes of importance to caregivers are achieved more often in the amantadine group.
2-28 NIDRR Program Directory FY 2004 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

New York Traumatic Brain Injury Model System (NYTBIMS)

Mount Sinai School of Medicine

Department of Rehabilitation Medicine; Research and Training Center

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

http://www.mssm.edu/nytbims

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372; Fax: 212/348-5901

Project Number: H133A020501

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: This project advances the understanding of TBI and its consequences and improves rehabilitation outcomes. The research projects focus on depression and fatigue, impairments that limit

participation in community and vocational activities: Treatment of Post-TBI Depression is a randomized clinical trial to examine the efficacy of sertraline (Zoloft) in the treatment of depression and

anxiety after traumatic brain injury. Study of Post-TBI Fatigue and its Treatment investigates the

components, consequences, and correlates of post-TBI fatigue, and in a randomized clinical trial,

evaluates the benefits of modafinil (Provigil) to treat fatigue in individuals with TBI.
NIDRR Program Directory FY 2004 - Health and Function 2-29

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

North Carolina

Carolinas Traumatic Brain Injury Rehabilitation and Research System

(CTBIRRS)

Charlotte Mecklenburg Hospital Authority

Charlotte Institute of Rehabilitation

1100 Blythe Boulevard

Charlotte, NC 28203

fhammond@carolinas.org

http://www.carolinas.org

Principal Investigator: Flora M. Hammond, MD

Public Contact: 704/355-4330; Fax: 704/355-0709

Project Number: H133A020522

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: This project investigates posttraumatic irritability, its relationship to the caregiver as a

component of the environment, the reaction to amantadine hydrochloride, and the nature of the problem as experienced by those in the community. The mission of CTBIRRS is to improve care and

outcomes for survivors of TBI through medical treatments, services, research, and dissemination to

expand and enhance services throughout their lifetime. The system begins with prevention and emergency medical services and extends through intensive care, acute care, and comprehensive medical

rehabilitation to long-term follow-up, community reintegration, and vocational rehabilitation.
2-30 NIDRR Program Directory FY 2004 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Ohio

Ohio Regional TBI Model System

Ohio Valley Center for Brain Injury Prevention and Rehabilitation

Department of Physical Medicine and Rehabilitation

Ohio State University

Dodd Hal

 480 West Ninth Avenue

Columbus, OH 43210

lamb-hart.1@osu.edu

http://www.ohiovalley.org

Principal Investigator: John D. Corrigan, PhD 614/293-3830

Public Contact: Gary Lamb-Hart 614/293-3802; Fax: 614/293-8886

Project Number: H133A020503

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 02 $365,000; FY 03 $364,995; FY 04 $364,970; FY 05 $364,885

Abstract: This model system includes two local research projects on substance abuse and persons

with TBI. Study 1 is a randomized clinical trial testing interventions to promote retention in substance

abuse treatment. This study employs intervention strategies found effective for clients with TBI when

first engaging with a treatment program. Study 2 tests the concurrent validity of an instrument that

documents the extent of a person’s prior history of TBI objectively. This instrument is intended for

research on TBI as a mediating factor in substance abuse treatment. This model system utilizes innovative community integration programs: Team Brain Injury (follow-up case management), the TBI

Network (substance abuse treatment), and Community Capacity Building (education and advocacy

operated in conjunction with the Brain Injury Association of Ohio).
NIDRR Program Directory FY 2004 - Health and Function 2-31

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Pennsylvania

The Moss Traumatic Brain Injury Model System

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

1200 West Tabor Road, Korman Suite 213

Philadelphia, PA 19141

thart@einstein.edu

http://www.einstein.edu/e3front.dll?durki=8108

Principal Investigator: Tessa Hart, PhD

Public Contact: 215/456-6544; Fax: 215/456-5926

Project Number: H133A020505

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: This project provides cutting-edge care for persons with TBI, conducts research on treatment of TBI in three key areas, and disseminates new knowledge to consumer and professional audiences, using an extensive collaborative network. Seven Trauma Centers and two nationally renowned

rehabilitation facilities, MossRehab and Magee Rehabilitation, collaborate in the clinical component of

the Moss Traumatic Brain Injury Model System. The Moss Rehabilitation Research Institute administers the research component, which includes collaborative longitudinal data collection, as well as three

local research projects on: (1) the use of assistive technology for cognitive and behavioral disabilities,

(2) validation of an observational rating scale of attention dysfunction in a psychostimulant treatment

trial, and (3) use of botulinum toxin for treating severe spasticity caused by TBI. The Moss TBIMS

emphasizes consumer involvement in clinical program improvement, research design, and dissemination via collaboration with the Brain Injury Association of Pennsylvania and other consumers.
2-32 NIDRR Program Directory FY 2004 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Pennsylvania

Collaboration of Upper Limb Pain in Spinal Cord Injury

University of Pittsburgh

7180 Highland Drive

Pittsburgh, PA 15206

boninger@pitt.edu

http://www.herlpitt.org

Principal Investigator: Michael L. Boninger, MD

Public Contact: Peter Hunt 412/365-4850; Fax: 412/365-4858

Project Number: H133A011107

Start Date: December 01, 2001

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $349,998; FY 02 $349,950; FY 03 $349,954; FY 04 $349,936; FY 05

$349,947

Abstract: This collaborative studies project provides an opportunity to gain further insight into the

cause and prevention of upper limb repetitive strain injuries in SCI. For the approximately 200,000

individuals with SCI, upper limb pain and injury is very common; some studies find prevalence rates

above 70 percent. Prolonged wheelchair use and transfers have long been thought to cause these

repetitive strain injuries. The consequences of upper limb pain are so significant that some researchers

have suggested that damage to the upper arm may be functionally and economically equivalent to a

spinal cord injury of higher neurological level. This collaboration includes the University of Pittsburgh

Medical Center Spinal Cord Injury project, the Northern New Jersey Spinal Cord Injury System

(NNJSCIS), and the Northwest Regional Spinal Cord Injury System (NWRSCIS).
NIDRR Program Directory FY 2004 - Health and Function 2-33

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Pennsylvania

University of Pittsburgh Brain Injury Model System (UPBI)

University of Pittsburgh

School of Medicine

3471 Fifth Avenue

Suite 201 Kaufmann Building

Pittsburgh, PA 15213

zafonterd@msx.upmc.edu

www.umc.pitt.edu/tbi/

Principal Investigator: Ross D. Zafonte, DO

Public Contact: 412/648-6979; Fax: 412/692-4410

Project Number: H133A020502

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 02 $364,484; FY 03 $360,375; FY 04 $362,875; FY 05 $362,875

Abstract: The research focus of the University of Pittsburgh Brain Injury Model System is on innovation in rehabilitation technology for persons with TBI. The project evaluates the impact of selected

innovations in technology on service delivery, functional outcome, and as a therapeutic intervention. It

addresses the shortcoming in wheelchair design for persons with brain injury by evaluating a unique,

personalized powered mobility system. Collaboration with the Robotics Institute at Carnegie Mellon

University allows researchers to perform a randomized trial evaluating the efficacy of virtual reality

and robotics for persons with TBI. Finally, the project uses intelligent navigation technology to implement and evaluate a web-based virtual case manager support structure for persons with TBI and their

families.
2-34 NIDRR Program Directory FY 2004 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

North Texas Burn Rehabilitation Model System (NTBRMS)

The University of Texas Southwestern Medical Center

Department of Physical Medicine and Rehabilitation

5323 Harry Hines Boulevard

Dallas, TX 75390-9136

radha.holavanahalli@utsouthwestern.edu

http://www.swmed.edu/ntbrms/welcome.htm

Principal Investigator: Karen Kowalske, MD 214/648-2288

Public Contact: Radha Holavanahalli, PhD 214/648-9540; 214/648-3654; Fax: 214/648-2005

Project Number: H133A020104

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000; FY 03 $300,000; FY 04 $300,000; FY 05 $300,000

Abstract: This project conducts five research projects, two collaborative and three site-specific: (1)

barriers to return-to-work following major burn injury; (2) long-term outcome following major burn

injury; (3) outcome following deep, full-thickness hand burns; (4) the evolution over time of burnassociated neuropathy; and (5) the socioeconomic determinants of disability in individuals with burn

injury. The North Texas Burn Rehabilitation Model System (NTBRMS) is a collaboration of Parkland

Health and Hospital System (PHHS) and the University of Texas, Southwestern Medical Center

(UTSW). Collaboration occurs on many levels at the NTBRMS. Clinical collaboration is the hallmark

of the burn team, which includes individuals from several institutions who work together seamlessly, as

well as collaboration with rural care providers through rural clinics and a biannual seminar. Research

collaboration occurs locally with the surgeons and academic computing staff, and nationally with the

other model systems.
NIDRR Program Directory FY 2004 - Health and Function 2-35

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

North Texas Traumatic Brain Injury Model System (NT-TBIMS)

The University of Texas Southwestern Medical Center

Department of Neurology

5323 Harry Hines Boulevard

Dallas, TX 75390-9036

caryn.harper@utsouthwestern.edu

www.utsouthwestern.edu

Principal Investigator: Ramon R. Diaz-Arrastia, MD, PhD 214/648-6409

Public Contact: Caryn R. Harper, MS, Project Administrator 214/648-7613; Fax: 214/648-3143

Project Number: H133A020526

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $364,999; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: The North Texas Traumatic Brain Injury Model System (NT-TBIMS) provides a comprehensive continuum of care for TBI patients from the time of arrival at the emergency department

through the intensive care unit, inpatient and outpatient rehabilitation, and long-term follow-up after

community integration. Additionally, the NT-TBIMS conducts two research projects aimed at obtaining predictive information regarding outcome after TBI, which is important to the goal of developing

novel therapies and tailoring these therapies to individual patients: (1) to determine whether the inheritance of particular alleles in certain candidate genes is associated with a greater risk of poor outcome

after TBI; and (2) to determine whether functional magnetic resonance imaging of the brain (fMRI) is

predictive of functional recovery after TBI.
2-36 NIDRR Program Directory FY 2004 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Pediatric Burn Injury Rehabilitation Model System

University of Texas Medical Branch

815 Market Street, Route 1220

Galveston, TX 77550

dherndon@utmb.edu; patblakeney@earthlink.net; Jlbailey@utmb.edu

Principal Investigator: David Herndon, MD 409/770-6731

Public Contact: Pat Blakeney, PhD 409/770-6718 or 713/661-1745; 409/770-6731; ; Fax: 713/661-

2871; 409/770-6919

Project Number: H133A020102

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000; FY 03 $300,000; FY 04 $300,000; FY 05 $300,000

Abstract: This program conducts independent and multi-center projects focusing on evaluating and

improving the rehabilitation provided to the burned child, striving to decrease disability and improve

reintegration into society. The project continues longitudinal assessments of patients, expanding the

database that includes measures of cardiopulmonary function, physical growth and maturation, bone

density, range of motion, activities of daily living, scar formation, reconstructive needs, and measures

of psychosocial adjustment. This data is used to identify areas that require improvement and provide

functional outcome measures that can be used in the evaluation of treatment methods. Research activities include: (1) a multi-center project assessing the efficacy of the long-term administration of

oxandrolone in the treatment of burn injury with endpoints of improved strength, lean body mass, bone

density, and growth; (2) improving rehabilitative outcomes for children by instituting and evaluating

major modifications to current treatment for children with large burns; (3) evaluating the use of pressure garments in controlling scar following burn injury; (4) a multi-center study evaluating the relationship between treatment, injury, patient characteristics, and patient outcome in those patients sustaining

full thickness hand burns; and (5) evaluating acute stress disorder and posttraumatic stress disorder,

including its occurrence, predictive elements, and efficacy of treatment.
NIDRR Program Directory FY 2004 - Health and Function 2-37

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Virginia

Virginia Commonwealth Traumatic Brain Injury Model System

Virginia Commonwealth University

Department of Physical Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0452

jhmarwit@vcu.edu

http://www.tbi.pmr.vcu.edu

Principal Investigator: Jeffrey S. Kreutzer, PhD 804/828-9055

Public Contact: Jennifer Marwitz 804/828-3704; Fax: 804/828-2378

Project Number: H133A020516

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: This project, utilizing rigorous scientific methods, examines the benefits of intervention

during the acute and post-acute periods after brain injury. TBIMS and other researchers have primarily

focused on delineating outcomes. Until recently, concerns about survivors’ emotional well-being and

adjustment to injury received scant attention. Yet, recent studies have identified a high prevalence of

depression, with many survivors reporting feelings of hopelessness, diminished self-esteem, and social

isolation. Brain injury also affects the family system; family members commonly describe emotional

distress, lack of respite, financial stress, and lack of community support. Projects in three major research areas focus predominantly on survivors. One study examines pharmacological approaches to

the treatment of depression, while another examines a structured approach to the treatment of acute

cognitive and neurobehavioral problems. Examining the benefits of intervention programs for family

members is the third major research area.
2-38 NIDRR Program Directory FY 2004 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

University of Washington Burn Injury Rehabilitation Model System

University of Washington

Department of Surgery

Division of Plastic Surgery

Harborview Medical Center

325 Ninth Avenue; Box 359796

Seattle, WA 98104

rassilon@u.washington.edu

http://faculty.washington.edu/engrav/index.html

Principal Investigator: Loren H. Engrav, MD 206/731-3183

Public Contact: Adrian Nelsen 206/731-2938; Fax: 206/731-3656

Project Number: H133A020103

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $300,000; FY 03 $300,000; FY 04 $300,000; FY 05 $300,000

Abstract: This model system conducts five research projects: (1) A New Approach to the Etiology of

Hypertrophic Scarring: develops an increased understanding of hypertrophic scarring. (2) Effect of

Virtual Reality on Active Range-of-Motion During Physical Therapy: uses distraction via immersive

virtual reality as an adjunctive non-pharmacologic analgesic. This study tests the hypothesis that virtual

reality allows patients to tolerate greater stretching during physical therapy compared to no distraction,

and that in spite of achieving greater range-of-motion, patients still experience lower pain levels while

in virtual reality. (3) Determination of Reasons for Distress in Burn-Injured Adults: identifies reasons

behind a burn survivor’s distress at various time-points after hospital discharge. (4) Barriers for Return

to Work: identifies specific barriers to return to work for burn survivors. (5) Acute Stress Disorder

Among Burn Survivors: evaluates the effectiveness of cognitive-behavioral therapy, relative to a nondirective, supportive therapy control group, and a national comparison sample in reducing the prevalence of posttraumatic stress disorder diagnosis and symptom severity. Projects 4 and 5 are collaborative. In addition this project participates in the national database.
NIDRR Program Directory FY 2004 - Health and Function 2-39

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

University of Washington Traumatic Brain Injury Model System

University of Washington

Department of Rehabilitation Medicine

Box 356490, BB-953 Health Sciences

Seattle, WA 98195

krbell@u.washington.edu

http://depts.washington.edu/rehab/tbi

Principal Investigator: Kathleen R. Bell, MD

Public Contact: 206/685-0935; Fax: 206/685-3244

Project Number: H133A020508

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $365,000; FY 03 $365,000; FY 04 $365,000; FY 05 $365,000

Abstract: This program conducts research relevant to TBI, enhances services to consumers, and

furthers the National Database and intersystem collaboration. The program’s three research projects

are: (1) a randomized controlled intervention study examining the effect of exercise on depression after

TBI. This low-cost, community intervention seeks to combat depression and emotional distress in

persons with stable TBI by employing exercise as a positive approach to improved emotional and

physical functioning and socialization. (2) An examination of the characteristics of TBI survivors who

are able to return to employment and hold jobs that are stable and complex in nature, utilizing both the

UW TBI longitudinal database and the Model System database. (3) An examination of the impact of

the Medicare prospective payment system for inpatient rehabilitation on TBI survivors receiving access

to acute rehabilitation efforts. The program also contributes to the National Database.
2-40 NIDRR Program Directory FY 2004 - Health and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

The Effect of Scheduled Telephone Intervention on Outcomes After

Traumatic Brain Injury (TBI)

University of Washington

Department of Rehabilitation Medicine

Box 356490, BB-953 Health Sciences

Seattle, WA 98195

krbell@u.washington.edu

http://depts.washington.edu/rehab/tbi

Principal Investigator: Kathleen R. Bell, PhD

Public Contact: 206/685-0935; Fax: 206/685-3244

Project Number: H133A040004

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $600,000; FY 05 $600,000

Abstract: This project evaluates the effect of scheduled telephone intervention (STI), a low-cost,

easily implemented intervention in three states on functional and health outcomes, at weeks 1-2, 4, 8,

and 12, and months 5, 7, and 9 on functional level, health and emotional status, community integration,

and perceived quality of well being over one year after TBI. Timely intervention to identify problems

after TBI, to teach patients and their families coping techniques within their own communities and

support their independent decision-making may effectively decrease the need for expensive and often

inaccessible services and may improve the quality of life for survivors of TBI. Researchers are evaluating the effect of additional STI at months 15, 18, and 21 on the same variables and employment at two

years after TBI. Research examines whether the effects of such intervention are similar in multiple sites

over a wide geographic area. It also examines the differential impact of the intervention in demographic subgroups, with particular attention to minority versus non-minority racial and ethnic populations
NIDRR Program Directory FY 2004 - Health and Function 2-41

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Alabama

UAB Model Spinal Cord Injury Care System

University of Alabama/Birmingham

Spain Rehabilitation Center

619-19th Street South SRC 529

Birmingham, AL 35249-7330

mott@uab.edu

http://main.uab.edu/show.asp?durki=10712

Principal Investigator: Amie B. Jackson, MD 205/934-3330

Public Contact: Pamela K. Mott, Director, Research Services 205/934-3283 (V); 205/934-4691

(TTY); Fax: 205/975-4642

Project Number: H133N000016

Start Date: October 01, 2000

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $340,000; FY 01 $340,000; FY 02 $340,000; FY 03 $340,000; FY 04

$340,000

Abstract: The purpose of the University of Alabama at Birmingham Spinal Cord Injury Care System

(UAB-SCICS) program is to provide cutting edge, cost effective, comprehensive care from the moment of injury across the life span for persons who incur an SCI; to investigate ways of improving

aspects of that system of care through clinical research; and to disseminate project research findings to

persons with SCI, their family members, and professional care providers. UAB-SCICS includes two

research projects: (1) investigating musculoskeletal/spine changes in post-menopausal women with

SCI; and (2) completing a longitudinal investigation of the processes involved in coming to terms with

disability over the first year post-injury. UAB-SCICS maintains linkages with emergency medical

service agencies throughout the state, with state and local VR and long-term follow-up programs, with

clinically oriented research activities within the UAB-SCICS itself, with UAB’s companion Medical

RRTC on Secondary Conditions of SCI, as well as with clinical research programs being conducted at

other Model SCI Systems. The UAB-SCICS currently maintains the National Spinal Cord Injury

Statistical Center.
2-42 NIDRR Program Directory FY 2004 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

California

Regional Spinal Cord Injury Care System of Southern California

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7601 East Imperial Highway, HB117

Downey, CA 90242-4155

rwaters@dhs.co.la.ca.us; rodjean@comcast.net

Principal Investigator: Robert L. Waters, MD; Adkins, Rod, PhD 562/401-7048

Public Contact: 562/401-8956; Fax: 562/401-7897

Project Number: H133N000029

Start Date: September 01, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $345,000; FY 01 $345,000; FY 02 $345,000; FY 03 $345,000; FY 04

$345,000

Abstract: The Regional Spinal Cord Injury Care System of Southern California’s primary mission is

to collect initial and follow-up data on persons who have sustained spinal cord injuries and submit it to

the national statistics database at the University of Alabama at Birmingham. Another component of the

project focuses on literacy in individuals with SCI. Also, the project identifies, evaluates, and eliminates environmental barriers, particularly cultural and social barriers, to enable people with SCI to

reintegrate fully into their community, and thus improve their lives. The project has been designed to

meet the needs of the approximately 75 percent minority and underserved populations that comprise its

clientele, and has samples sufficient for achieving adequate statistical power in the relevant designs and

producing meaningful research. Finally, the System contributes new and useful information to the

current collection of SCI literature. This project contributes to the national statistics database at the

University of Alabama at Birmingham.
NIDRR Program Directory FY 2004 - Health and Function 2-43

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

California

Model Spinal Cord Injury System

Santa Clara Valley Medical Center (SCVMC)

Rehabilitation Research Center

751 South Bascom Avenue

San Jose, CA 95128

jerry.wright@hhs.co.scl.ca.us

http://www.tbi-sci.org

Principal Investigator: Tamara Bushnik, PhD 408/793-6446

Public Contact: 408/793-6433; Fax: 408/793-6434

Project Number: H133N000007

Start Date: October 01, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $340,000; FY 01 $340,000; FY 02 $340,000; FY 03 $340,000

Abstract: The system of care at the Santa Clara Valley Medical Center (SCVMC) that extends from

the scene of the accident to community reintegration has been developed through a program encompassing services, teaching and demonstration, and clinical research activities in its northern and central

California and Nevada catchment area. This effort continues to include community agency staff and

consumers and has produced a network of services addressing the needs of individuals with SCI.

Based on input from consumers and their family members, community organizations, rehabilitation

health professionals, and the rehabilitation literature, the research program studies: (1) the efficacy of

peer support, both group and one-on-one mentoring, to improve quality of life, physical and psychosocial status, and community participation and integration; (2) if a regular exercise program can improve

the above mentioned community outcomes; (3) the effect of high personal attendant turnover on the

above mentioned variables and whether an intervention can decrease that turnover and improve outcomes; and (4) the provision of SCI-specific education and whether improving knowledge improves

outcomes. This project contributes to the national statistics database at the University of Alabama at

Birmingham. :
2-44 NIDRR Program Directory FY 2004 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Colorado

The Rocky Mountain Regional Spinal Injury System

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

susie@craighospital.org

http://www.craighospital.org

Principal Investigator: Daniel P. Lammertse, MD; Gale G. Whiteneck, PhD 303/789-8220

Public Contact: Scott Manley, EdD 303/789-8214 (V); 303/789-8575 (TTY); Fax: 303/789-8219

Project Number: H133N000001

Start Date: October 01, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $375,000; FY 01 $375,000; FY 02 $375,000; FY 03 $375,000; FY 04

$375,000

Abstract: The Rocky Mountain Regional Spinal Injury System emphasizes research and significant

contributions that have been made in the areas of SCI costs of care, aging, outcome assessment, high

tetraplegia, neurorehabilitative surgery, and program evaluation, as well as participation in randomized

controlled multicenter clinical trials. An integrated research agenda includes a controlled clinical trial of

therapy for shoulder pain and evaluations of longitudinal outcomes of surgery for spinal cord myelopathies, recovery from pressure sore surgery, perimenopausal symptoms and treatments in women with

SCI, the issues of women who provide assistance to a partner with SCI, and the impact of environmental barriers on the full participation of people with SCI. The project includes two highly regarded Level

I trauma centers with specialized acute neurotrauma care facilities (St. Anthony Hospital and Swedish

Medical Center) and the rehabilitation and lifetime follow-up services of Craig Hospital. These facilities bring together a full complement of disciplines and specialists, medically directed by six full-time

physicians specializing in SCI acute care and rehabilitation management, to provide all components of

a model system of care. This project contributes to the national statistics database at the University of

Alabama at Birmingham.
NIDRR Program Directory FY 2004 - Health and Function 2-45

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Florida

South Florida Regional Spinal Cord Injury Model System

University of Miami

School of Medicine

P.O. Box 016960 (D-461)

Miami, FL 33101

msipski@miami.edu

http://www.sci.med.miami.edu/index.asp

Principal Investigator: Marca L. Sipski, MD 305/585-1328

Public Contact: 305/585-1339; Fax: 305/585-1340

Project Number: H133N000017

Start Date: October 01, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $375,000; FY 01 $320,000; FY 02 $320,000; FY 03 $320,000; FY 04

$320,000

Abstract: The South Florida Spinal Cord Injury System (SFSCIS) is a cooperative effort between the

University of Miami School of Medicine, The Miami Project to Cure Paralysis, Jackson Memorial

Hospital, and the Miami VA Medical Center. The SFSCIS is a multidisciplinary system of care providing comprehensive rehabilitation services specifically designed to meet the special needs of individuals

with spinal cord injuries. The clinical components of the SFSCIS include emergency medical services,

acute care, vocational and other rehabilitation services, community and job placement, and long-term

community follow-up and health maintenance. A comprehensive prevention program is included in the

program. A significant and substantial research program focuses on the maintenance of health and

function; three clinical trials and five major research projects are included. Each of these projects

centers on studying interventions to improve outcomes in the preservation or restoration of function

following SCI. In addition to these research projects, this project contributes to the National Spinal

Cord Injury Database. A program designed for widespread dissemination of research and demonstration findings is included. In addition, culturally appropriate methods of education, training, and outreach are interwoven throughout the projects. Finally, the program includes a comprehensive evaluation program.
2-46 NIDRR Program Directory FY 2004 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Georgia

Georgia Regional Spinal Cord Injury Care System

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road Northwest

Atlanta, GA 30309-1465

lesley_hudson@shepherd.org

http://www.shepherd.org

Principal Investigator: David F. Apple, Jr., MD 404/350-7353

Public Contact: Lesley M. Hudson, MA, Project Co-Director 404/350-7591; Fax: 404/355-1826

Project Number: H133N000005

Start Date: September 30, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $374,992; FY 01 $374,992; FY 02 $374,992; FY 03 $374,992; FY 04

$374,992

Abstract: The Georgia Regional Spinal Cord Injury Care System admits approximately 200 individuals annually with acute onset paralysis secondary to spinal cord injury, and collects post-discharge data

on 600 individuals each year. Its patient population comes primarily from Georgia, the rest of the

Southeast, and the Eastern Seaboard. The continuum of care begins at injury and continues through

transport, assessment, acute care, rehabilitation, emotional adjustment, community reintegration, and

lifetime follow-up. The program is involved with site-specific research projects on incomplete spinal

cord injuries, enhanced long distance technological communications with patients, and the determination of early predictors of secondary complications. As part of the clinical research activity sponsored

by the facility’s Crawford Research Institute, the program is responsible for ongoing referrals of

individuals with acute injury, as well as long-term follow-up and data collection. This project contributes to the national Model Spinal Cord Injury System (SCIS) national database at the University of

Alabama at Birmingham.
NIDRR Program Directory FY 2004 - Health and Function 2-47

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Massachusetts

The New England Regional Spinal Cord Injury Center

Boston University Medical Center Hospital

Department of Rehabilitation Medicine

Preston F-511

732 Harrison Avenues

Boston, MA 02118-2393

jane.wierbicky@bmc.org

http://www.bumc.bu.edu/Departments/HomeMain.asp?DepartmentID=91

Principal Investigator: Steve Williams, MD

Public Contact: Jane Wierbicky Claudine DeJoie 617/638-7316 (Jane Wierbicky) 617/638-7389

(Claudine DeJoie); Fax: 617/638-7313

Project Number: H133N000024

Start Date: October 01, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $374,514; FY 01 $300,000; FY 02 $300,000; FY 03 $300,000

Abstract: The New England Regional Spinal Cord Injury Center (NERSCIC) operates through a

joint partnership between the Boston Medical Center (BMC) and the Boston University School of

Public Health (BUSPH). While acute care and rehabilitation are administered at BMS, BUSPH plays

an equally important role in developing research, education, and training projects to meet the needs of

people with SCI. Additionally, NERSIC maintains a research partnership with Boston’s Spaulding

Rehabilitation Hospital and Woburn HealthSouth Rehabilitation Hospital. Additionally, NERSCIC has

initiated collaboration with Gaylord Hospital. The Model SCI System includes multiple projects: (1) a

pilot study on the effects of Internet access upon the health and social interactions of people with SCI;

(2) a study of building accessibility in eastern Massachusetts; (3) the development of a consumer-rated

Internet guide based on input from individuals with SCI; (4) an employment study, providing comprehensive services to chronically unemployed individuals with SCI; (5) a study of the relationship

between pain severity and participation in paid employment and/or education for persons with SCI.

This project contributes to the national statistics database at the University of Alabama at Birmingham.

NERSCIC also publishes a quarterly newsletter.
2-48 NIDRR Program Directory FY 2004 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Michigan

University of Michigan Model Spinal Cord Injury Care System

University of Michigan

Department of Physical Medicine and Rehabilitation

300 North Ingalls, Room NI2A09

Ann Arbor, MI 48109-0491

model.sci@umich.edu

http://www.med.umich.edu/pmr/model_sci

Principal Investigator: Denise G. Tate, PhD; David R. Gater, MD, PhD 734/936-7052

Public Contact: Claire Z. Kalpakjian, PhD, Research Associate 734/763-0971; Fax: 734/936-5492

Project Number: H133N000009

Start Date: November 01, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $320,000; FY 01 $320,000; FY 02 $320,000; FY 03 $320,000

Abstract: The University of Michigan Model Spinal Cord Injury Care System provides comprehensive care and services to both children and adults, and is the only facility in Michigan to care for

ventilator-dependent persons of all ages with SCI. The project objectives are to: (1) provide a continuum of comprehensive, multidisciplinary services for persons with SCI, from emergency medical

services to long-term community follow-up, with a focus upon maintaining health; (2) demonstrate the

effects of the continuum of comprehensive services, focusing on its efficacy in promoting employment,

health maintenance and wellness, independent living, and community reintegration; (3) conduct

significant research, using a participatory action research approach involving consumer input from

inception through implementation; (4) operate an efficient service system; and (5) develop and demonstrate methods of community outreach and education in collaboration with the Ann Arbor Center for

Independent Living (AACIL) to reach professionals, consumers, and their families in other rehabilitation facilities and Centers for Independent Living in Michigan. These objectives emphasize community

reintegration as a key outcome. The Model System is in collaboration with the AACIL, with the goal

of promoting community reintegration. This partnership ensures a coordinated approach to clinical

care, training, and research that integrates consumer empowerment with comprehensive lifelong

follow-up, bringing a consumer-professional synergy to the project that serves as an example for other

Model SCI Systems. This project contributes to the national statistics database at the University of

Alabama at Birmingham.
NIDRR Program Directory FY 2004 - Health and Function 2-49

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Missouri

Missouri Model Spinal Cord Injury System

University of Missouri/Columbia

Department of Health Psychology

One Hospital Drive, DC046.46

Columbia, MO 65212

nossamanl@health.missouri.edu

http://www.hsc.missouri.edu/~momscis

Principal Investigator: Laura H. Schopp, PhD, ABPP 573/888-8847

Public Contact: Larry Nossaman 573/884-2899 (V); 573/882-7971 (TTY); Fax: 573/884-2902

Project Number: H133N000012

Start Date: October 01, 2000

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $300,000; FY 01 $300,000; FY 02 $300,000; FY 03 $300,000; FY 04

$300,000

Abstract: The Missouri Model Spinal Cord Injury System (MOMSCIS) is committed to developing,

implementing, and evaluating innovative research promoting independent living and community

integration among persons with spinal cord impairment. The study focuses on the effect of a consumerdirected personal assistance services training intervention on consumer satisfaction, independent living

and community integration. The study developed, implemented and evaluated the in-person Individualized Management of Personal Assistant/Consumer Teams (IMPACT) workshop. Workshop participants received information on preventing and treating secondary medical conditions, including pressure sores, urinary tract infections, bowel and bladder management, autonomic dysreflexia, pain

management, chronic fatigue, and thermoregulation, and information on relationship issues, such as

hiring and firing, communication styles and strategies, assertiveness, and team building. Study objectives were: 1) to determine the effect of the IMPACT workshop on consumer satisfaction, the incidence of secondary conditions, activity, and participation (as defined by the ICF); 2) to determine the

effect of the IMPACT workshop on personal assistants’ job satisfaction, job stress and attrition; and 3)

to provide online resources to the disability community, including an online personal assistant training

manual for consumers and assistants, and an online resources database. Activity and participation were

measured by the PARTicipation Survey for persons with Mobility Limitations (PARTS/M).
2-50 NIDRR Program Directory FY 2004 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

New Jersey

Northern New Jersey Spinal Cord Injury System

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052-1499

dtulsky@kmrrec.org

http://www.kmrrec.org/KM/nnjscis/index.php3

Principal Investigator: David Tulsky, PhD 973/243-6849

Public Contact: David S. Tulsky, PhD 973/243-6849; 973/243-6916; Fax: 973/243-3527

Project Number: H133N000022

Start Date: September 01, 2000

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 00 $345,000; FY 01 $344,724; FY 02 $345,000; FY 03 $345,000; FY 04

$345,000

Abstract: The Northern New Jersey Spinal Cord Injury System (NNJSCIS) attempts to improve

outcomes for persons with SCI through novel interventions and expanded service delivery options.

The NNJSCIS is composed of Kessler Medical Rehabilitation Research and Education Corporation,

Kessler Institute for Rehabilitation, and University of Medicine and Dentistry of New Jersey-University Hospital. The NNJSCIS has an interdisciplinary system of rehabilitation care specifically designed

to meet the needs of individuals with SCI. It includes emergency medical services; acute care; psychological, social, and vocational services; peer support; independent living services; community and job

placement, long-term community follow-up; and health maintenance. Some of the research and demonstration projects target three of the most common secondary conditions (pressure ulcers, shoulder

pain, and urinary tract infections). Other studies promote wellness by reducing obesity, examine the

relation between health literacy and outcomes, and identify risk factors and prevent potential problems.

One project operationalizes the newly developed Clinical Practice Guidelines. The NNJSCIS contributes to the National Statistics Data Center.
NIDRR Program Directory FY 2004 - Health and Function 2-51

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

New York

Mount Sinai Spinal Cord Injury Model System

Mount Sinai School of Medicine

Department of Rehabilitation Medicine

One Gustave L. Levy Place; Box 1240

New York, NY 10029-6574

marcel.dijkers@mssm.edu

http://www.mssm.edu/rehab/spinal

Principal Investigator: Kristian T. Ragnarsson, MD

Public Contact: Marcel Dijkers, PhD 212/659-9340; Fax: 212/348-5901

Project Number: H133N000027

Start Date: October 01, 2000

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $320,000; FY 01 $320,000; FY 02 $320,000; FY 03 $320,000; FY 04

$320,000

Abstract: The Mount Sinai Spinal Cord Injury Model System (MS-SCI-MS) of the Department of

Rehabilitation Medicine of Sinai Hospital (MSH) and the Mount Sinai School of Medicine (MSSM) in

New York City provides comprehensive care to meet the diverse needs of persons with SCI in its

catchment area. There are four components of the system: (1) comprehensive clinical care; (2) research

(both center-specific research and contributions to the national statistics database); (3) dissemination,

education, and training; and (4) injury prevention. The comprehensive clinical program stresses interdisciplinary care, and employs a primary team model to enhance coordination among caregivers.

Comprehensive outpatient rehabilitation services and long-term follow-up at MSH are also included.

Rehabilitation services include an evaluation program for a high-tech wheelchair and seating system, a

lower-extremity functional electrical stimulation ergometry program, psychosocial services, extensive

VR services, a consumer-directed program to promote community reintegration (DO IT!), and a

women’s peer group, and formal and informal peer mentoring programs, as well as a Life Challenge

program. Specialty medical and surgical services include a fertility program for males with ejaculatory

dysfunction, intrathecal pumps for treatment of spasticity, upper extremity reconstruction, and cuttingedge technology. An approach to screening and early intervention of secondary medical conditions is a

preventive health care demonstration project. The research program of MS-SCI-MS consists of two

studies relevant to one of the most disabling secondary conditions of SCI, chronic pain: (1) metaanalyses of pain reports and pain treatments; and (2) a prospective study of pain. This project contributes to the national statistics database at the University of Alabama at Birmingham.
2-52 NIDRR Program Directory FY 2004 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Pennsylvania

Demonstration of a Model Spinal Cord Injury System Center

Thomas Jefferson University Hospital

Jefferson Medical College

132 South 10th Street

375 Main Building

Philadelphia, PA 19107-5244

mary.patrick@jefferson.edu

http://www.spinalcordcenter.org

Principal Investigator: John F. Ditunno, Jr., MD 215/955-5580

Public Contact: Mary Patrick 215/955-6579; Fax: 215/955-5152

Project Number: H133N000023

Start Date: September 01, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $370,000; FY 01 $370,000; FY 02 $370,000; FY 03 $370,000; FY 04

$370,000

Abstract: The Regional Spinal Cord Injury Center of Delaware Valley (RSCICDV) is a comprehensive program of coordinated patient care, education, and research activities. The RSCICDV: (1)

conducts on-site research focusing on improved outcome measures to meet Federally established

objectives; (2) refines and improves the RSCICDV’s operational services and demonstration projects;

and (3) conducts four development projects including development of an SCI web site, implementation

of an SCI Care Path, development of a Pressure Sore Program, and employing persons with SCI

through hireAbility. The on-site research includes four experiments: (1) validation of the Walking

Index of Spinal Cord Injury (WISCI) scale in a clinical setting for severity and hierarchical ranking; (2)

validation of WISCI scale for elements of a disability measure for distance, speed, and endurance into

WISCI levels; (3) demonstration that the WISCI scale is responsive to change in a clinical trial setting;

and (4) demonstration of consumer preference for walking. The four development projects include: (1)

improved access to information via the website; (2) implementation of a critical pathway for more

efficient heathcare delivery; (3) increased employment and advancement of employment through

hireAbility; and (4) increased monitoring of pressure sores and strategies for prevention. This project

contributes to the national statistics database at the University of Alabama at Birmingham.
NIDRR Program Directory FY 2004 - Health and Function 2-53

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Pennsylvania

University of Pittsburgh Model Center on Spinal Cord Injury

University of Pittsburgh

7180 Highland Drive, 151R-1

Pittsburgh, PA 15206

boninger@pitt.edu

http://www.upmc-sci.org

Principal Investigator: Michael L. Boninger, MD 412/365-4861

Public Contact: Fax: 412/365-4858

Project Number: H133N000019

Start Date: December 01, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $320,000; FY 01 $320,000; FY 02 $320,000; FY 03 $320,000; FY 04

$320,000

Abstract: The University of Pittsburgh Model Center on Spinal Cord Injury (UPMC-SCI) represents

the efforts of dedicated consumers, clinicians, and researchers. The UPMC-SCI’s research focus is on

innovations in AT. The research projects evaluate the impact of selected innovations in technology on

service delivery and on outcomes such as function, independence, and employment. One project is

addressing a shortcoming in AT research through the use of a new dynamic outcome measure developed by David Gray PhD. Researchers are also testing an innovative pushrim-activated, powerassisted wheelchair that has great potential to improve mobility for individuals with tetraplegia. In a

third project, researchers are examining an innovative technology in the form of an exercise system

(GAMECycle) to increase cardiovascular fitness in a population with SCI. The GAMECycle is an

interface between a personal computer and an arm ergometer allowing for computer play while exercising. An additional project is testing a Seating and Mobility Concordance Test (SMCT) to determine

if this measure is capable of discriminating among clinicians with differing levels of experience in

seating and mobility prescription in SCI. In addition to this research, the center provides a model of

care for individuals with SCI. SCI care at the University of Pittsburgh is provided in a multidisciplinary

manner with a high level of communication among the constituent services. The fully implemented

system of continuity of treatment begins with the emergency response at the scene of injury and

continues with comprehensive treatment and rehabilitation from medical/surgical- to acute-stage

rehabilitation through utilization of AT services and VR.
2-54 NIDRR Program Directory FY 2004 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Texas

Texas Model Spinal Cord Injury System

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Street

Houston, TX 77030-3408

khart@bcm.tmc.edu

http://www.bcm.tmc.edu/pm&r/sci/research/modelsystem

Principal Investigator: William H. Donovan, MD 713/797-5912

Public Contact: Karen A. Hart, PhD 713/797-5946 (V); 713/797-5790 (TTY); Fax: 713/797-5982

Project Number: H133N000004

Start Date: September 01, 2000

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 00 $330,000; FY 01 $330,000; FY 02 $330,000; FY 03 $330,000; FY 04

$330,000

Abstract: The Texas Model Spinal Cord Injury System (TMSCIS) provides services along the entire

continuum of care from emergency medical service to long-term follow-up and management of secondary conditions. TMSCIS performs an analytic longitudinal investigation of disability models to

explore and quantify the interaction among various individual and environmental variables. TMSCIS

operationalizes the Institute of Medicine model of disability utilizing state-of-the-art measurement

techniques and comprehensive statistical approaches to test hypotheses about dynamic interrelations of

persons with SCI and their environment. This investigation involves following newly injured persons

with SCI for two years after injury. Measurements are taken of pre-injury life conditions, enabling

processes, as well as personal, psychological, and physical environments. This project contributes to

the national statistics database at the University of Alabama at Birmingham. In addition, the project

develops and tests theoretically derived structural models from the national database and other existing

data sources.
NIDRR Program Directory FY 2004 - Health and Function 2-55

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Virginia

VCU Model Spinal Cord Injury Center

Virginia Commonwealth University

School of Medicine

Department of Physical Medicine and Rehabilitation

Box 980661

Richmond, VA 23298-0661

wmckinle@hsc.vcu.edu

http://www.sci.pmr.vcu.edu/

Principal Investigator: William O. McKinley, MD; David X. Cifu, MD 804/828-0861

Public Contact: Michelle Meade, PhD 804/828-5401; Fax: 804/828-6340

Project Number: H133N000015

Start Date: October 01, 2000

Length: 60 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 00 $310,000; FY 01 $310,000; FY 02 $310,000; FY 03 $310,000; FY 04

$310,000

Abstract: This project develops and implements a Model Spinal Cord Injury System at Virginia

Commonwealth University/Medical College of Virginia (VCU/MCV), that has a concentrated emphasis on employment. Researchers within this Model Systems systematically monitor and assess the

impact of interventions, advancing technology, and policy changes on employment following SCI. In

addition to contributing to the National Statistical Database at the University of Alabama at Birmingham, the VCU SCI Model System has three research studies. These studies involve the direct utilization of the SCI National Database, a major employment policy study across 18 states, and also an

evaluation of technology training on employment of outcome. Involvement of SCI mentors in training

new vocational mentors with SCI is also an important aspect of the project. By looking at the issues

associated with employment for persons with SCI, this project complements other resources in place

within VCU/MCV, including the RRTC on Workplace Supports, long-term relationships with the

Virginia Department of Rehabilitation Services, and existing SCI Model Systems delivery of care. A

significant number of persons with disabilities are involved as project staff as well as on an Advisory

Board. A close relationship with the Mid-Atlantic Paralyzed Veterans Association (PVA) enhances

training, dissemination, and other outreach activities.
2-56 NIDRR Program Directory FY 2004 - Health and Function

Model Spinal Cord Injury Systems Model Spinal Cord Injury Systems

Washington

Northwest Regional Spinal Cord Injury System

University of Washington

Department of Rehabilitation Medicine

Box 356490

Seattle, WA 98105-6613

scirehab@u.washington.edu

http://depts.washington.edu/rehab/sci

Principal Investigator: Diana D. Cardenas, MD; Charles Bombardier, PhD 206/543-8171

Public Contact: Cynthia Salzman 206/685-3999; Fax: 206/685-3244

Project Number: H133N000003

Start Date: September 01, 2000

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $330,000; FY 01 $330,000; FY 02 $330,000; FY 03 $330,000; FY 04

$330,000

Abstract: The University of Washington’s Northwest Regional Spinal Cord Injury System

(NWRSCIS) serves a critical mass of patients with SCI and has all the necessary disciplines to provide

state-of-the-art medical, surgical, and rehabilitation care. NWRSCIS has four objectives: (1) examine

interventions to improve outcomes in the preservation or restoration of function or the prevention and

treatment of secondary conditions; (2) contribute to the national database; (3) maintain specialized

clinical programs; and (4) develop and maintain education programs for consumers and families,

especially for those who belong to minority and disadvantaged groups. In addition, the Center provides

for the widespread dissemination of research and demonstration findings through its publications and

website. This project contributes to the national statistics database at the University of Alabama at

Birmingham.
NIDRR Program Directory FY 2004 - Health and Function 2-57

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Improving Muscular Use and Cardio-Respiratory Demand in SpinalCord-Injured Patients Performing Functional Electronically

Stimulated Leg Cycle Ergonometry

University of California, Davis

Department of Mechanical and Aeronautical Engineering

2060 Bainer Hall

Davis, CA 95616

mlhull@ucdavis.edu

Principal Investigator: Maury Hull, PhD

Public Contact: 530/752-6220; Fax: 530/752-4158

Project Number: H133G020137

Start Date: January 01, 2003

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 02 $149,971; FY 03 $146,330; FY 04 $144,845

Abstract: This project develops new stimulation patterns for a functional electrically stimulated (FES)

leg cycle ergometer (LCE) that enable persons with spinal cord injuries to exercise with greater benefit.

Greater benefit is defined as exercising for a longer period of time and at a higher work rate while

involving more leg muscles than is possible with existing ergometers. To reach the general aim, the

research is divided into three phases, each directed towards testing a specific hypothesis: (1) normal

recumbent pedaling can be simulated using a computational musculoskeletal model of the leg; (2)

minimizing muscle fatigue in a forward dynamic simulation of recumbent pedaling yields computed

stimulation patterns that enable an individual with SCI to pedal the FES-LCE for longer periods of

time, and at higher work rates, than is possible with current stimulation patterns; and (3) using neural

stimulation patterns computed from a forward dynamic simulation of recumbent pedaling in which

selected muscles of both the upper and lower leg are activated, an individual can pedal the FES-LCE

to obtain a greater cardio-respiratory workout than when only upper leg muscles are stimulated.
2-58 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Cardiovascular Disease in Women with Spinal Cord Injury and Its

Effect on Participation in Community Activities

Los Amigos Research and Education Institute, Inc. (LAREI)

P.O. Box 3500

Downey, CA 90242

julial@larei.org

http://www.larei.org

Principal Investigator: Yaga Szlachcic, MD

Public Contact: Rodney Atkins, PhD; Lili Thompson, PT 562/401-7221; Fax: 562/803-6354

Project Number: H133G010160

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $141,470; FY 02 $145,835; FY 03 $149,709; FY 04 $0 (No-cost extension

through 9/30/2005)

Abstract: The goals of this project are: (1) to profile cardiovascular disease (CVD) risk factors in

women with SCI, (2) to assess the relationships between CVD risk factors and “observable” CVD in

this group, (3) to assess the associations of CVD risk factors and observable CVD with quality of life

and with participation in community activities among women with SCI, (4) to evaluate standard

interventions for lipid abnormalities and CVD in women with SCI, and (5) to assess the impact lipid

and CVD interventions have on the quality of life and community activity participation of women with

SCI. For these goals “observable” CVD refers to atherosclerotic burden by carotid arterial intimamedia thickness.
NIDRR Program Directory FY 2004 - Health and Function 2-59

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Quantified Custom Inserts: An Amputation Prevention Program for

Diabetic Patients

Rancho Los Amigos

7601 East Imperial Highway

Downey, CA 90242

pklab@larei.org

http://larei.org/pk_overview.htm

Principal Investigator: Jacquelin Perry, MD; Richard Chambers, MD

Public Contact: Jacquelin Perry, MD 562/401-7177; Fax: 562/803-5693

Project Number: H133G020002

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $149,999; FY 03 $146,589; FY 04 $145,079

Abstract: This project identifies footwear factors which reduce plantar pressures experienced during

walking and decrease the incidence of skin ulceration in individuals with diabetes mellitus. Reduction

of skin ulceration is critical for ensuring maximum independence in living and employment and for

decreasing the emotional and financial consequences associated with managing the disease process and

subsequent disability. Preservation of the patient’s limb depends on reducing the injurious pressures

experienced by the foot during walking. Today’s techniques of shoe and insert production, however,

are inconsistent because no objective criteria for an effective shoe system have been developed. This

may result in persons with diabetes mellitus receiving custom footwear that does not effectively reduce

their plantar pressures. All subjects in this project are at risk for ulceration due to a history of partial

foot amputation or previous foot ulcers. Walking plantar pressures, in newly delivered custom footwear

are measured using pressure localization and quantifying insoles (PEDAR System) placed under each

foot. Subjects are randomly assigned to one of two, 80-person groups for orthotic management. For the

PEDAR control group, the pressure data are discussed with the subject and then stored for later reference. Data for PEDAR intervention group are discussed with the subject and then are used to correct

the custom inserts to reduce plantar pressures below 21 N/cm2. The orthotist is given the plantar

pressure plot and modifies the insert as indicated, and planter pressures during gait are reassessed

interactively until the protective threshold is attained.
2-60 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Daily Living Context and Pressure Sores in Consumers with Spinal

Cord Injury

University of Southern California

Department of Occupational Science and Occupational Therapy

1540 Alcazar Street, CHP-133

Los Angeles, CA 90089-9003

jwise@usc.edu

http://www.usc.edu/hsc/ihp/ot

Principal Investigator: Florence Clark, PhD, OTR 323/442-2875

Public Contact: Janis Wise 323/442-2851; Fax: 323/442-1540

Project Number: H133G000062

Start Date: September 01, 2000

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 00 $149,942; FY 01 $147,834; FY 02 $149,837; FY 03 $0 (No-cost extension

through 8/31/2004); FY 04 $0 (No-cost extension through 3/31/2005)

Abstract: This project examines the beliefs and practices underlying the activities, habits, and daily

routines of 18 ethnically diverse consumers with SCI. The intent is to document how personality,

lifestyle patterns and choices, and environmental context mutually interact within the individually

constructed lives of consumers to influence the development of pressure sores. The problem of recurrent, medically serious pressure sores represents a key challenge to the ability of individuals with SCI

to experience a full and satisfying life. Although prior research has documented that the development

of pressure sores is in general linked to psychosocial and environmental variables, there is a need to

obtain new, consumer-centered information about how pressure sores can be minimized through

personally tailored adaptive strategies that are responsive to the opportunities and difficulties embedded

in the unique sets of everyday circumstances that characterize individual lives. A variety of data collection procedures, including participant observation as well as interviews with consumers, their

caregivers, and other associated persons, are analyzed to generate results that are comprehensive and

trustworthy. These results are used to develop a series of applied products, including: (1) a consumeroriented self-help manual; (2) a set of guidelines for rehabilitation practice; and (3) a lifestyle-oriented

occupational therapy treatment model. Consumer representatives contribute to all aspects of the project

to ensure that it is relevant and maximally useful to the target population.
NIDRR Program Directory FY 2004 - Health and Function 2-61

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Development and Evaluation of a Quality of Life Instrument for

Individuals with Adult-Onset Hearing Loss

San Diego State University

School of Speech, Language, and Hearing Sciences

San Diego, CA 92182

carrenjstika@aol.com

http://chhs.sdsu.edu/slhs/stika/research1/

Principal Investigator: Carren J. Stika, PhD

Public Contact: 858/552-1996; Fax: 858/642-0266

Project Number: H133G030191

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $149,980; FY 04 $149,999; FY 05 $149,995

Abstract: This project develops a standardized, psychometrically rigorous quality of life instrument for

individuals with adult-onset hearing loss that is conceptually linked to the full range of functional

domains commonly impacted by hearing loss, and which quantifies respondents’ perceptions of

domain satisfaction and subjective well-being. Further, the quality of life instrument integrates the new

paradigm of disability, whereby environmental, cultural, and personal variables are considered in

relation to the individual’s disability. The enhancement of quality of life has recently been recognized

as the essential purpose of health care and rehabilitation. Research is showing that it is the individual’s

subjective well-being rather than the objective health condition or functional status that determines

treatment-seeking behavior, compliance with treatment, and treatment outcome. Individuals with

hearing loss represent the single largest disability group in the United States, with prevalence rates

rising. Despite the fact that hearing loss often has a profound influence on personal and social adjustment, employment status, and general well-being, few psychological measures currently exist to help

assess these effects or evaluate intervention outcomes
2-62 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Colorado

Mortality and Life Expectancy After Traumatic Brain Injury

Rehabilitation

Craig Hospital

3425 South Clarkson Street

Englewood, CO 80113

charrison-felix@craighospital.org

http://www.craighospital.org

Principal Investigator: Gale G. Whiteneck, PhD 303/789-8204

Public Contact: Cynthia Harrison-Felix, PhD 303/789-8565; Fax: 303/789-8441

Project Number: H133G020182

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000

Abstract: This project investigates mortality, life expectancy, causes of death, and risk factors for

death in individuals with TBI receiving inpatient rehabilitation and surviving beyond one year postinjury. This research tests the following hypotheses: (1) that TBI increases mortality and decreases life

expectancy among survivors completing rehabilitation, (2) that causes of death do not match the

general population, (3) that the risk of death is greater in certain subgroups, and (4) that survival has

increased over the decades of improved care. Products of this project include: (1) a consumer and

professional publication on TBI mortality and life expectancy in the TBI Model Systems, (2) a consumer and professional publication on TBI mortality and life expectancy changes over four decades at

Craig Hospital, (3) an interactive website allowing entry of basic individual and injury characteristics

that reports probabilities of various life expectancies, and (4) a report on the most effective strategy for

expanding the TBI Model Systems mortality study to include all TBI cases rehabilitated at Model

System facilities, even before they were designated as a Model System. This study, lead by the Rocky

Mountain Regional Brain Injury System at Craig Hospital, involves the 16 TBI Model Systems funded

by NIDRR.
NIDRR Program Directory FY 2004 - Health and Function 2-63

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Delaware

Investigation of the Dynamics of Spasticity in Children with Cerebral

Palsy

Alfred I. duPont Hospital for Children

1600 Rockland Road

Wilmington, DE 19899-0269

fee@gait.aidi.udel.edu

http://www.kidshealth.org

Principal Investigator: Freeman Miller, MD

Public Contact: Dyonne Knotts 302/651-5921; Fax: 302/651-5951

Project Number: H133G010041

Start Date: November 01, 2001

Length: 36 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 01 $149,708; FY 02 $144,023; FY 03 $148,284

Abstract: This project creates a new assessment tool for spasticity in cerebral palsy that quantifies both

the long-term changes in muscle structure and the short-term effects of the hyperexcitable stretch

reflex. The result is a comprehensive testing protocol that can be used in a wide range of therapeutic

interventions. The new device can apply torques about the knee and ankle of a limb with spasticity in

such a way that velocity, acceleration, and the third derivative, jerk, can be varied and resistance of the

limb to movement measured. The device can be used (1) to investigate the reflex resistance to movement elicited by constant velocity, constant acceleration, and constant jerk; and (2) to define the passive

biomechanics of the limb by applying short duration pulses of torque to the limb combined with the

limb’s position, velocity, and acceleration. This work is unique in the recognition of the limb with

spasticity as a closed loop system consisting of the biomechanics of the limb and the reflexes (due to

motion) feeding back on that limb. As a result of using the new tool, many therapy protocols such as

hippotherapy, stretching, hydrotherapy, range of motion exercises, and others may be found to be of

significant benefit to one component of spasticity over the other.
2-64 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

The Impact of Cognitive Impairment and Outcomes Following SCI

Shepherd Center, Inc.

Crawford Research Institute

2020 Peachtree Road, NW

Atlanta, GA 30309

Principal Investigator: Stephen Macciocchi

Public Contact: 404/350-7553

Project Number: H133G030004

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 03 $149,642; FY 04 $149,920; FY 05 $142,514

Abstract: This project is designed to determine whether moderate to severe neurocognitive impairment secondary to comorbid (brain injury) and/or premorbid cognitive disorders (learning disability/

attention deficit disorder) negatively impacts functional, health, quality of life, and participation outcomes following SCI. Participants are followed (1) to determine the base rate of neurocognitive disorders in persons with SCI and (2) to establish the relative effect premorbid/comorbid neurocognitive

impairment has on functional skills, health status, quality of life outcomes at discharge from inpatient

rehabilitation, and participation outcomes at one year following discharge.
NIDRR Program Directory FY 2004 - Health and Function 2-65

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Muscle Strength, Physical Work Capacity, and Functional Performance

in Individuals with Down Syndrome

University of Illinois/Champaign

College of Applied Life Sciences

108 Huff Hall, 1206 South Fourth Street

Champaign, IL 61820

fernhall@uiuc.edu

Principal Investigator: Bo Fernhall, PhD

Public Contact: 217/333-2131

Project Number: H133G040323

Start Date: October 01, 2004

Length: 24 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 04 $149,984; FY 05 $149,591

Abstract: This project evaluates the minimal muscle strength and endurance thresholds required for

daily functional performance, such as rising from a chair, ascending or descending stairs, the ability to

walk fast enough to cross a street in the time allotted at signaled intersections, and general walk/run

performance. The project also evaluates the effect of resistance training on the ability to perform these

daily tasks and on quality of life in individuals with Down syndrome. This project is built on the

premise that most individuals with Down syndrome have low levels of muscle strength which substantially contribute to functional limitations, poor work capacity and reduced quality of life. Although

many other factors contribute to functional limitations and decreased quality of life in people with

disabilities, muscle strength is a consistent major contributor, and muscle strength can easily be addressed in intervention programs.
2-66 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Enhancement of Upper Limb Functional Recovery in Stroke Using a

Computer-Assisted Training Paradigm

Rehabilitation Institute Research Corporation

Sensory Motor Performance Laboratory, #1406

345 East Superior Street

Chicago, IL 60611

jpdewald@casbah.acns.nwu.edu

http://sulu.smpp.nwu.edu/jdewald

Principal Investigator: Julius Dewald, PT, PhD

Public Contact: 312/908-6788; Fax: 312/908-0741

Project Number: H133G80063

Start Date: August 01, 1998

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 98 $124,992; FY 99 $124,923; FY 00 $124,957; FY 02 $0 (No-cost extension

through 10/31/2003); FY 03 $0 (No-cost extension through 10/31/2004); FY 04 $0 (No-cost extension

through 10/31/2005)

Abstract: This study investigates use of a novel computer-assisted isometric training regime to overcome abnormal movement synergies following hemiparetic stroke. In most stroke patients, these

synergies are reflected, in part, by the existence of abnormal coordination between the activations of

shoulder and elbow muscles. These stereotypic movement patterns found in stroke survivors are

functionally disabling and often debilitating, yet are not well understood in the rehabilitation setting.

Current neurotherapeutic approaches to the amelioration of these abnormal patterns have produced, at

best, limited functional recovery. Therefore, the objectives of this investigation are to evaluate and

demonstrate the usefulness and effectiveness of a novel static training regime to enhance the quality of

life of consumers with stroke. The effects of 2 training regimes on functional arm movement are being

investigated in 40 hemiparetic stroke subjects. The first protocol uses a general, classical strengthening

regimen to increase torque production in specific directions. The second approach strengthens subjects

using torque combinations that require the subject to deviate progressively from their abnormal torque

synergies. Assessment of the effectiveness of these two protocols is based on quantitative comparisons

of voluntary upper limb movements performed pre- and post-training.
NIDRR Program Directory FY 2004 - Health and Function 2-67

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Development of an Intelligent Therapeutic Stretching Device for Stroke

Patients

Rehabilitation Institute of Chicago

345 East Superior Street, Room 1406

Chicago, IL 60611-4496

l-zhang@northwestern.edu

http://p3.smpp.northwestern.edu

Principal Investigator: Li-Qun Zhang, PhD,

Public Contact: 312/238-4767; Fax: 312/238-2208

Project Number: H133G010066

Start Date: September 01, 2001

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $148,822; FY 02 $148,571; FY 03 $145,955; FY 04 $0 (No-cost extension

through 8/31/2005)

Abstract: This project develops a useful and practical ankle stretching device with advanced control

features that can be used by therapists and individuals who are post-stroke. Project activities include:

(1) developing a portable stretching device with intelligent control to stretch an ankle joint with spasticity/contracture safely and repeatedly throughout the ankle range of motion (ROM) to reduce spasticity/

contracture, (2) evaluating the outcome quantitatively, and (3) comparing it with a continuous passive

motion machine. The device stretches the joint safely to extreme dorsi- and plantar-flexion until a

specified peak resistance torque is reached with precise control of stretching velocity, based on resistance torque. Outcome is evaluated quantitatively in multiple aspects during each of the stretching

sessions. Changes in joint-intrinsic properties are quantified by the passive ROM, joint stiffness,

viscous damping, and energy loss during the controlled passive stretching, while the reflex changes are

quantified by reflex gain and threshold. Functional changes induced by the stretching are evaluated

through the active ROM, plantar and dorsi-flexor co-contraction, and foot-drop and walking speed

during locomotion. In general, similar stretching devices can be developed to treat spastic joints other

than the ankle and other neurological disorders troubled by spasticity/contracture. Finally, the stretching device is portable and has a relatively low cost, making it convenient and economical for patients

to use in a clinic or at home.
2-68 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Development of a Pressure Ulcer Prevention Beliefs Instrument for

Persons with Spinal Cord Injury

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1406

Chicago, IL 60611-4496

rbking@northwestern.edu

Principal Investigator: Rosemarie B. King, PhD, RN

Public Contact: 312/908-8038; Fax: 312/503-5868

Project Number: H133G010058

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 01 $148,101; FY 02 $149,996; FY 03 $149,987; FY 04 $0 (No-cost extension

through 9/30/2005)

Abstract: This project develops a measure that clinicians can use to assess the health beliefs of persons

with SCI regarding pressure ulcer (PU) prevention. The goals of the study are to: (1) develop an

instrument to measure PU-prevention health beliefs that is reliable by collecting qualitative data on

perceptions about PU risk and seriousness, barriers to and benefits of preventive skin care, and confidence in performing skin care; (2) develop a health beliefs instrument that is structurally and theoretically valid; and (3) describe the pressure ulcer prevention beliefs of 375 persons with recent or chronic

SCI. The project uses qualitative data to develop questionnaire items on perceptions about PU risk and

seriousness, barriers to and benefits of predict skin-care, and confidence in performing skin care. The

measure is used to describe and predict skin-care behaviors. Statistics used to determine reliability and

validity of the measure include internal consistency reliability, exploratory factor analysis, Rasch

analysis, and hierarchical multiple regression analyses. Findings facilitate the development of health

belief-based interventions that address the multifactorial basis of risk for PU development. The addition

of skin care health beliefs to risk prediction instruments should increase the predictive power of such

instruments.
NIDRR Program Directory FY 2004 - Health and Function 2-69

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Three Dimensional Assessment and Rehabilitation of Arm Function

Following Stroke

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1406

Chicago, IL 60611

r-beer@northwestern.edu

Principal Investigator: Randall F. Beer, PhD 312/238-1412

Public Contact: 312/238-1412; Fax: 312/238-2208

Project Number: H133G030204

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 03 $149,957; FY 04 $149,926; FY 05 $149,884

Abstract: The goal of this project is to develop and evaluate the Multi-Axis Cartesian-based Arm

Rehabilitation Machine (MACARM) - a new device for the quantitative assessment and rehabilitation

of three dimensional arm movements following stroke. As a cost-effective alternative to robotic arm

technology, the MACARM utilizes a geometric arrangement of relatively simple, single degree of

freedom “Active Modules” to achieve a large workspace and high force and positional performance.

The MACARM is founded on the Multipurpose Multiaxial Isokinetic Dynamometer (MMID) originally developed as an exercise system for NASA. The objectives of this project are as follows: (1) to

modify the MMID hardware to achieve the force and positional accuracy required for upper limb

rehabilitation, (2) to develop MACARM software for upper limb assessment and rehabilitation, (3) to

validate the static and dynamic force and positional performance of the MACARM, and (4) to test the

MACARM with human subjects, including stroke survivors.
2-70 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Gait Abnormalities in Individuals with Stroke: Implications to

Rehabilitation

Rehabilitation Institute Research Corporation

345 East Superior Street, Suite 1436

Chicago, IL 60611

y-dhaher@northwestern.edu

Principal Investigator: Yasin Y. Dhaher, PhD

Public Contact: 312/238-1408; Fax: 312/238-2208

Project Number: H133G040065

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 04 $149,964; FY 05 $149,981

Abstract: This project assesses hip kinematics using standard motion analysis technology during

overground walking, and kinetics measured during constrained (i.e., sagittal plane restricted) simulated

treadmill walking using an instrumented robotic gait orthosis. These behaviors are compared to static

measures of both volitional and reflex (stretch) measurements at the hip, knee, and ankle joints of the

affected limb. Such measurements are performed in individuals with chronic stroke to identify factors

that contribute to abnormal frontal plane behaviors. In individuals with acute stroke, research characterizes the mechanisms underlying development of abnormal frontal plane kinematics throughout the

natural recovery and rehabilitation processes. Finally, by providing specific gait retraining paradigms at

the initial and chronic stages of injury, the project determines the mutability of abnormal gait kinematics throughout the recovery process.
NIDRR Program Directory FY 2004 - Health and Function 2-71

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Maryland

Increasing States’ Allocations of Medicaid Dollars to CommunityBased Care: Where Might Policy Intervene?

University of Maryland/Baltimore County

Policy Sciences Graduate Program

1000 Hilltop Circle

Baltimore, MD 21250-0001

nanmille@umbc.edu

Principal Investigator: Nancy Miller, PhD

Public Contact: 410/455-3889; Fax: 410/455-1172

Project Number: H133G010023

Start Date: September 01, 2001

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 01 $148,706; FY 02 $130,519; FY 03 $58,309; FY 04 $0 (No-cost extension

through 8/31/2005)

Abstract: This research project features two related studies. First, the project examines factors that

influence community-based care expenditures for different subgroups of individuals with disabilities.

Analyses focus on Medicaid 1915(c) waiver expenditures, examining the effect of a set of state-level

variables shown in previous work to be related to state fiscal effort, on expenditures for five segments

of the population: the frail elderly, individuals with developmental disabilities, younger people with

disabilities, persons with AIDS, and children with a variety of disabling conditions. Research identifies

the extent to which variables amenable to policy influence are either shared, or differ across segments

of the population with disabilities. Second, the project examines the relationship between increased use

of 1915(c) waiver services and total, as well as institutional, long-term care expenditures. Research

examines the extent to which states can redirect institutional dollars to community-based care without

increasing total long-term care expenditures. Community-based care services are, on average, noticeably less costly than institutional services; if the site of care is the community rather than the institution

more individuals are able to access care. Providing greater access to long-term care in preferred community settings, without increasing total long-term care costs, is viewed as evidence of cost effectiveness. Cost concerns have repeatedly been raised in discussions to expand community-based care. By

focusing on Medicaid 1915(c) waiver programs, this project provides important cost effectiveness

information not presently available.(i:
2-72 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Maryland

Bilateral Arm Training in Patients with Chronic Hemiparesis

University of Maryland

100 Penn Street

Baltimore, MD 21201-1082

jwhitall@som.umaryland.edu

http://pt.umaryland.edu/academic/phd

Principal Investigator: Jill Whitall, PhD

Public Contact: 410/706-0764; Fax: 410/706-6387

Project Number: H133G010111

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 01 $148,579; FY 02 $148,742; FY 03 $150,000; FY 04 $0 (No-cost extension

through 9/30/2005)

Abstract: This project uses a randomized controlled study to test the validity of low intensity repetitive

bilateral arm training with rhythmic auditory cuing to improve upper extremity (UE) motor function.

This training program is based on principles of motor learning and control. A long-term objective of

this research program is to understand the principles and mechanisms underlying UE stroke rehabilitation and to provide a scientific basis for planning treatments for stroke rehabilitation.
NIDRR Program Directory FY 2004 - Health and Function 2-73

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Development of Methods to Monitor Functional Tasks

NeuroMuscular Research Center

Boston University

19 Deerfield Street 4th Floor

Boston, MA 02215

sroy@bu.edu

http://nmrc.bu.edu

Principal Investigator: Serge H. Roy, ScD

Public Contact: 617/358-0718; Fax: 617/353-5737

Project Number: H133G020108

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000

Abstract: This project develops a method to identify functional activities based on combined surfacedetected electromyographic and accelerometer signals. This capability provides an ability to discriminate between various functional activities such as feeding, grooming, dressing, ambulating, toileting,

and transfers solely on the basis of information from wearable biosensors. Self-report methods currently in use are subjective or are clinically based and do not accurately portray a patient’s functional

status throughout the day in their home or community. Existing monitors rely solely on accelerometers

to provide continuous activity monitoring in remote locations, but they are limited to general activity

assessment. This method can be combined with commercially available data loggers for a portable

system that continuously and unobtrusively monitors the functional abilities of a patient in their home

or community. Such objective and quantitative information can improve the effectiveness of rehabilitation services by establishing realistic goals, monitoring home-based therapy, and establishing the need

for transition to other levels of care.
2-74 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

A Randomized Trial of Realignment Therapy for Treatment of Medial

Knee Osteoarthritis

Boston University

Clinical Epidemiology and Research Training Unit

715 Albany Street, Room A203

Boston, MA 02118

djhunter@bu.edu

Principal Investigator: David J. Hunter, MD, PhD

Public Contact: 617/638-5180; Fax: 617/638-5239

Project Number: H133G040201

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: The overall objective of this project is to determine whether the provision of realignment

therapy in patients with medial knee osteoarthritis (OA) relieves knee pain and improves function. The

project tests the hypothesis that compared to control treatment, the use of realignment therapy (valgus

knee brace + motion control shoes + orthosis) is effective in medial knee OA. The specific aims are:

(1) To undertake a 24 week randomized crossover clinical trial in patients with medial knee osteoarthritis to determine whether provision of realignment therapy leads to lower pain scores and improved

function during the time of this treatment than during the use of a placebo treatment; (2) to perform an

open label follow-up study to track use and effectiveness of treatment. This project is co-funded by

Generation II, a knee bracing company
NIDRR Program Directory FY 2004 - Health and Function 2-75

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Psychological and Physiological Aspects of Menopause in Women with

Spinal Cord Injury

University of Michigan

Department of Physical Medicine and Rehabilitation

300 North Ingalls, Room NI2A09

Ann Arbor, MI 48109-0491

Principal Investigator: David R. Gater, MD, PhD 734/647-5195

Public Contact: Fax: 734/936-5492

Project Number: H133G040274

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $149,924; FY 05 $149,432

Abstract: The overall goal of this project is to test the general hypothesis that SCI will moderate the

relationship of menopause and health-related outcomes. This research involves two interrelated studies

of women with SCI: Study 1 is aimed at examining physical (e.g., secondary conditions), and psychological outcomes (e.g., depression, perceived stress), while Study 2 is aimed at examining physiological outcomes (e.g., body composition, fitness levels). These studies involve a total of 227 women with

SCI, men with SCI, and women without disabilities. Study 1 involves three collaborating centers

(University of Michigan, Craig Hospital, and Santa Clara Valley Medical Center) in the collection of

longitudinal survey data from 207 participants to assess the ability to reliably distinguish secondary

conditions of SCI from menopause symptomatology and experience of menopause symptomatology in

women with SCI (women without disabilities serve as controls). Men with SCI serve as controls in the

first part of this study. Study 2 (University of Michigan only) collects longitudinal data to investigate

physiological outcomes menopause in a total of 20 women.
2-76 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Functional Assessment and Treatment of Neurogenic Hypotension Due

to Spinal Cord Injury

Rehabilitation Institute of Michigan

Wayne State University

261 Mack Boulevard, Room 834

Detroit, MI 48201

enieshof@dmc.org

Principal Investigator: Edward Nieshoff, MD

Public Contact: 313/745-9733; Fax: 313/745-1063

Project Number: H133G020128

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $116,835; FY 03 $116,118; FY 04 $119,442

Abstract: This project characterizes hypotensive phenomena associated with SCI and evaluates the

effects of midodrine, an alpha-sympathomimetic medication, on them. Specifically, cardiovascular

autonomic insufficiency due to SCI is manifested by (1) orthostatic hypotension, which impedes early

rehabilitation efforts and causes subjective distress, and (2) exertional hypotension, which contributes

to pathological fatigue and limited exercise performance. Thus, two corresponding protocols are

employed to evaluate the effects of anti-hypotensive treatment with midodrine on each impairment,

using two methods of hemodynamic challenge: head-up tilt table testing is used to elicit orthostatic

hypotension, and arm-crank ergometry to elicit exertional hypotension. In each protocol, a randomized

crossover within-subjects design allows for comparison of the effects of three interventions (compression garments, midodrine 10mg, and placebo) on subjective and objective responses. Ability to tolerate

head-up tilt is assessed by heart rate, blood pressure, and symptoms during inclination; exercise tolerance is evaluated by oxygen consumption and perceived exertion in addition to the latter. Similar

cardiovascular autonomic insufficiency in non-paralyzed populations responds dramatically to treatment with the midodrine, with increased ability to engage in physical activity. This project is the first

controlled trial of midodrine in SCI.
NIDRR Program Directory FY 2004 - Health and Function 2-77

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Minnesota

Personalized Health Care for Individuals with Physical Disabilities:

Satisfaction with Services and Outcomes

University of Minnesota

Institute on Community Integration

111 Pattee Hall; 150 Pillsbury Drive Southeast

Minneapolis, MN 55455-0223

abery001@umn.edu

Principal Investigator: Brian Abery, PhD

Public Contact: 612/625-5592; Fax: 612/624-9344

Project Number: H133G010064

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 01 $149,834; FY 02 $149,178; FY 03 $149,539; FY 04 $0 (No-cost extension

through 9/30/2005)

Abstract: This project demonstrates both the direct and indirect effects of the AXIS approach to health

care on the lives of adults with physical disabilities. AXIS Healthcare, a joint venture of Sister Kenny

Institute and Courage, Inc., was formed to bring knowledge of physical disability to the application of

managed care. When dealing with health issues, people with physical disabilities often find themselves

battling not only illness but also the health care system itself; this project works in partnership with

persons with physical disabilities to coordinate a high-quality, cost effective network of specialized

services spanning the continuum of care. Over the course of the project, the health outcomes and

satisfaction levels of individuals with physical disabilities taking part in this program are monitored on

a regular basis. The health outcomes and satisfaction of a comparison group of individuals receiving

care through traditional plans are also followed during this time. The project is conducted with the

understanding that programs similar to this one are not likely to be established on a wide-scale basis

until it can be empirically demonstrated that such programs have a significant impact on the quality of

life of the people they serve. The project is a collaborative effort of The University of Minnesota,

Courage Inc., AXIS Healthcare, and The Metropolitan Center for Independent Living in Minneapolis.
2-78 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Minnesota

Home-Based Tracking Training to Stimulate Neuroplasticity and

Improve Function in Stroke

University of Minnesota

MMC 388

Minneapolis, MN 55455-2070

carey007@umn.edu

Principal Investigator: James R. Carey, PhD, PT

Public Contact: 612/626-2746; Fax: 612/625-7192

Project Number: H133G020145

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $149,929; FY 03 $149,989; FY 04 $149,416

Abstract: This project examines: (1) whether home-based joint movement tracking training is effective

in promoting improved hand function and brain reorganization in subjects with chronic stroke, and (2)

whether the mechanism of any such improvement is learning-dependent or use-dependent. Recent

research has shown that repetitive efforts by subjects with chronic stroke using their paretic hand at a

finger movement tracking task produced significant improvements in hand function and brain reorganization. The training technique requires patients to learn how to create precision movements of the

index finger to track target waveforms on a computer screen. This project investigates whether homebased tracking treatment using a laptop computer and telecommunication technology can be as effective as earlier work with clinic-based treatment. Equally important, this project determines whether it is

the motor learning or the repetitive movement that serves as the mechanism of improvement.
NIDRR Program Directory FY 2004 - Health and Function 2-79

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Nebraska

Investigation of the Dynamics of Development of Sitting Postural

Control in Infants with Cerebral Palsy

University of Nebraska at Omaha

HPER Biomechanics Lab

6001 Dodge Street

Omaha, NE 68182-0216

nstergiou@mail.unomaha.edu

http://www.unocoe.unomaha.edu/hper/bio/home.htm

Principal Investigator: Nicholas Stergiou, PhD; Wayne A. Stuberg, PhD, PT; Regina T. Harbourne,

PT 402/554-3247

Public Contact: 402/554-2670; Fax: 402/554-3693

Project Number: H133G040118

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: The overall goal of this research is to understand the mechanisms underlying the development of postural control in sitting using new methodology, in order to provide a scientific basis for

evaluation and treatment of posture and movement disorders in infants with cerebral palsy. The development of early posture control remains poorly understood despite considerable therapeutic effort.

Infants with cerebral palsy show their first delays in the acquisition of sitting, with subsequent problems developing adequate posture and movement control. Identifying the delay, determining the nature

of the problem, and evaluating the effectiveness of treatment quickly, are vital in the early part of an

infant’s life, since this is the time of greatest plasticity. Tools from nonlinear dynamics, which are

increasingly being used to examine other biological rhythms, are used in this study to analyze postural

sway from center of pressure data during the development of sitting postural control.
2-80 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Ohio

Empowering Persons with a Spinal Cord Injury Through a Shared

Decision-Making Program

Case Western Reserve University

2500 Metrohealth Drive

Cleveland, OH 44109

pkmurray@metrohealth.org

Principal Investigator: Patrick Murray, MD 216/778-3901

Public Contact: Mary Jo Roach, PhD, Project Manager 216/778-8781; Fax: 216/778-3945

Project Number: H133G020029

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $149,759; FY 03 $149,759; FY 04 $149,759

Abstract: This project systematically summarizes information concerning the various aspects of

bladder management and SCI and prepares it in a format that allows persons with SCI to make more

informed decisions about this issue. A panel of clinicians, experts in the care of persons with SCI, meet

to develop a table of estimates concerning costs, complications, long-term risks, and effects on other

aspects of care for each of the four commonly used approaches to bladder management and two

emerging technologies. This panel is supported by a team that abstracts relevant literature and assists

with decision analysis, when needed. These clinical estimates are shared with three focus groups of

persons with SCI. The focus groups discuss the clinical findings and add relevant information about

how the clinical aspects integrate with personal, vocational, and preference issues for individuals with

SCI. The investigators use these two sets of information to develop a script for a multimedia presentation tailored to address the specifics of any individual’s clinical situation. The multimedia presentation

is evaluated for its ability to enhance informed decisions among persons with SCI concerning bladder

management.
NIDRR Program Directory FY 2004 - Health and Function 2-81

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Opening the “Black Box”: The Content and Process of Learning in

Inpatient Traumatic Brain Injury Rehabilitation

Moss Rehabilitation Research Institute

1200 West Tabor Road

Philadelphia, PA 19141

thart@einstein.edu

Principal Investigator: Tessa Hart, PhD

Public Contact: 215/456-6544; Fax: 215/456-5926

Project Number: H133G020052

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $144,312; FY 03 $147,355; FY 04 $140,425

Abstract: This project aims to perform a systematic study of the content and process of learning events

and teaching strategies in inpatient TBI rehabilitation, and to develop reliable tools by which they may

be characterized. Much of the content and process of rehabilitation for TBI remains within a “black

box” of unspecified therapy approaches and modalities. This project uses a variety of innovative

strategies to open the “black box,” to collect and analyze data on content and process variables for both

qualitative and quantitative purposes. Following a participatory action research model, the project

utilizes a project team composed of experienced clinicians in the field of TBI rehabilitation. The team

uses converging task analysis methods including group process, interviewing, and field observation to

develop a systematic, hierarchically organized classification of learning events used in inpatient TBI

rehabilitation, and a classification system and operational definitions of key therapist behaviors in the

areas of task setup, task guidance, and task feedback/reinforcement. Particular attention is devoted to

aspects of content and process relevant to errorless learning, on the assumption that this strategy will be

particularly valuable to future research efforts. The team is assisted throughout by distinguished consultants with expertise in TBI and cognitive rehabilitation, errorless learning, and rehabilitation research methodology.
2-82 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

Naturalistic Action Impairment in Left Hemisphere Stroke: Cognitive

Predictors and Consequences

Albert Einstein Healthcare Network

Moss Rehabilitation Research Institute

Korman 213, 1200 West Tabor Road

Philadelphia, PA 19141

lbuxbaum@einstein.edu

Principal Investigator: Laurel Buxbaum, PsyD

Public Contact: 215/456-5953; Fax: 215/456-5926

Project Number: H133G030169

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $149,936; FY 04 $149,319; FY 05 $149,966

Abstract: This project: (1) provides a detailed analysis of the cognitive and neuroanatomical predictors

of naturalistic action (NA) performance in well-characterized individuals who have suffered left

hemisphere stroke; (2) clarifies the relationships between left hemisphere apraxia and the performance

of NA; (3) identifies the left hemisphere neuroanatomic structures associated with NA impairment; (4)

improves the construct validity of the Naturalistic Action Test, a published measure of NA developed

by the investigators, by establishing its relationship to tests of apraxia, and extending what is known of

its relationships to measures of attention and executive function; and (5) educates rehabilitation professionals and caregivers about results these research goals. Acquired impairment in activities of daily

living and instrumental activities of daily living such as meal preparation, dressing, and shopping is a

common and persistent consequence of stroke, affecting approximately 50 percent of the nearly four

million Americans living with the effects of stroke. Impairment in these NA activities has important

consequences for caregiver burden and independence, and predicts future risk of failure to return to

work, nursing home admission, and death.
NIDRR Program Directory FY 2004 - Health and Function 2-83

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

A Study of Biophysical and Microvascular Function of Individuals with

SCI: Implications for Alternating Pressure Support Surfaces

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

Forbes Tower, Suite 5044

Pittsburgh, PA 15260

dbrienza@pitt.edu

Principal Investigator: David M. Brienza, PhD 412/383-6591

Public Contact: Jean Webb 412/383-6586 (V); 412/383-6598 (TTY); ; Fax: 412/383-6597

Project Number: H133G040222

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 04 $149,246; FY 05 $149,115

Abstract: The specific aims of this research study are to: (1) characterize blood flow control mechanisms (e.g. metabolic, neurogenic, and myogenic controls) via laser Doppler blood flow using Wavelet

analysis in individuals with SCI; (2) investigate the use of alternating pressure for enhancing skin

blood flow in SCI; (3) compare the effect of neurogenic control of cutaneous microcirculation on the

strength of blood flow responses to alternating pressure in SCI with T-6 above and below; and (4)

compare the effect of soft tissue properties on the strength of blood flow responses to alternating

pressure in SCI with T-6 below and unimpaired subjects. These studies provide insight into mechanisms important to the configurations of optimal parameters for enhancing blood flow in SCI population, and provide a valid method for the evaluation of alternating pressure devices.
2-84 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Rhode Island

Project Shake It Up! health Promotion and Capacity Building for

persons with Traumatic Spinal Cord Injury and other Neuromuscular

Disabilities

Brown University

Center for Alcohol and Addiction Studies

Box G-BH

Providence, RI 02912

sarah_everhart@brown.edu

Principal Investigator: Pamela Block, PhD; Sarah Everhart Skeels, MPH 401/444-1876

Public Contact: 401/444-1876; Fax: 401/444-1881

Project Number: H133G010094

Start Date: January 01, 2002

Length: 36 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 01 $149,783; FY 02 $148,927; FY 03 $149,939

Abstract: Project Shake It Up promotes health and capacity building for people with SCI and other

neuromuscular disabilities through physical activity, recreation, improving independent living skills,

developing peer support networks and promoting self-advocacy. Project Shake It Up also builds the

capacity of two local nonprofit organizations controlled and staffed primarily by individuals with

disabilities: Shake-A-Leg, Inc., whose focus is rehabilitation and recreation, and PARI, a center for

independent living. Project objectives include: (1) developing a culturally competent training and

recreation program, including a manual that addresses independent living issues such as disability

rights, self-advocacy, education, employment, transportation, sexuality, alcohol and substance use, and

health promotion; (2) implementing and evaluating the Shake It Up program for health promotion,

physical activity, and alcohol and substance use reduction; (3) establishing peer-support networks to

provide long-term support for intervention participants; (4) increasing the capacity of Shake-A-Leg and

PARI to promote alcohol and substance use reduction through health promotion and empowerment;

and (5) disseminating the program nationwide by making the manual the Shake It Up model widely

available.r:
NIDRR Program Directory FY 2004 - Health and Function 2-85

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

Risk for Early Mortality After Spinal Cord Injury

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

Research Office

19 Hagood Ave, Suite 910; PO Box 250822

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-1107

Project Number: H133G030117

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $149,984; FY 04 $149,996; FY 05 $149,964

Abstract: This project identifies the relationships of life adjustment, quality of-life, activities, fitness,

and secondary conditions with length of survival and causes of death after SCI. Two studies utilize

distinct prospective data sets. The data for study 1 was collected from 362 participants in 1990/1991,

whereas the data for study 2 was collected from 597 participants in 1995/1996. Similar, but not identical, measures were obtained from each of the two study samples. Current mortality status is identified

using the National Death Index and the Master Beneficiary Record and Summary Earnings files from

the Social Security Administration. The most basic biographic and injury related variables are entered

as a block first as statistical controls. The general life adjustment and health variables and the more

specific secondary conditions variables, none of which have been the focus of previous studies, are

investigated in more detail in relation to mortality, as they hold the greatest promise for intervention.
2-86 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Assessment of Social Communication Abilities Following Traumatic

Brain Injury

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund

Houston, TX 77030-3498

strucm@tirr.tmc.edu

http://www.braininjuryresearch.org

Principal Investigator: Margaret Struchen, PhD

Public Contact: 713/666-9550; Fax: 713/383-5695

Project Number: H133G010152

Start Date: September 01, 2001

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 01 $149,657; FY 02 $146,203; FY 03 $149,968; FY 04 $0 (No-cost extension

through 8/31/2005)

Abstract: This project is guided by a model of social communication that includes cognitive components, awareness, the social environment, and receptive, processing, and expressive components.

Activities include: (1) adapting social skills measures used with other populations to test the receptive,

processing, and expressive social communication abilities of persons with TBI and comparing the

results to those of a group of matched control subjects; (2) assessing the relationship between social

communication ability and functional outcome for persons with TBI and their family members; and (3)

investigating the relationship between executive functioning abilities and social communication skills,

in an effort to determine the cognitive functions underlying social skills impairment. The study is

expected to result in a clinically feasible and meaningful way to assess social communication abilities,

which can be a guide to clinicians in developing empirically driven interventions to improve social

skills.
NIDRR Program Directory FY 2004 - Health and Function 2-87

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Cost Effectiveness Of Rehabilitation Following Traumatic Brain Injury

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

1333 Moursund Avenue

Houston, TX 77030-3498

whigh@bcm.tmc.edu

http://www.braininjuryresearch.org

Principal Investigator: Walter M. High Jr., PhD

Public Contact: 713/383-5643; Fax: 713/668-5210

Project Number: H133G030144

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: This project researches the effectiveness of rehabilitation on two new cohorts of persons

with TBI who have either received or not received comprehensive inpatient rehabilitation. At one year

post injury, costs for services the persons with TBI are likely to receive and vocational losses are

calculated and adjusted for demographic, socioeconomic, and neurological variables. The differences

between the costs and vocational losses between the two groups are then compared to the actual

reimbursements for comprehensive inpatient rehabilitation services.
2-88 NIDRR Program Directory FY 2004 - Health and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Quantitative Study of Anterior and Posterior Walker Usage Dynamics

in Children with Cerebral Palsy

Marquette University

Orthopaedic and Rehabilitation Engineering Center

P.O. Box 1881

Milwaukee, WI 53201-1881

gerald.harris@marquette.edu

http://www.orec.org

Principal Investigator: Gerald F. Harris, PhD, PE 414/288-0698

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133G010069

Start Date: November 01, 2001

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $149,995; FY 02 $149,991; FY 03 $149,997

Abstract: This study enables caregivers to make more informed decisions regarding proper walker

selection and follow-up by comparing the effects of anterior walkers versus the effects of posterior

walkers among ambulatory patients with spastic cerebral palsy. It also provides a quantitative foundation for improving future pediatric walker designs. A hallmark of this study is the acquisition of functional performance data using standardized mobility test instruments. Each child entered into the study

is evaluated using the Gross Motor Function Measure, in addition to the Pediatric Outcomes Data

Collection Instrument at each stage of the study. The children also undergo standardized spasticity

testing with the Ashworth and Tardieu assessment scales. Final statistical comparison/correlation of the

quantitative (biomechanical) and functional assessment test results is used to streamline the walker

evaluation process and offer a more practical tool for assessment and walker prescription.
NIDRR Program Directory FY 2004 - Health and Function 2-89

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Wisconsin

Enhanced Upper Limb Motor Control by Reduced Synergistic Muscle

Patterns and Spasticity After Chemodenervation

Medical College of Wisconsin

Physical Medicine and Rehabilitation

8701 Watertown Plank Road; Box 26509

Milwaukee, WI 53226

jmcguire@mcw.edu

Principal Investigator: John McGuire, MD

Public Contact: 414/805-7355

Project Number: H133G020112

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 02 $149,995; FY 03 $149,995; FY 04 $149,991

Abstract: This research project assesses the impact of chemodenervation treatment on motor control in

patients with spastic hemiparesis. Moreover, the project examines the neurophysiological mechanisms

of improved motor control following chemodenervation treatment by utilizing state-of-the-art biomechanical analyses of motor abilities in combination with clinical measurements and consumer feedback

related to patients with functional limitations attributed to spasticity. The study identifies changes in

spasticity, limb synergy, and functional reaching tasks using clinical and biomechanical measurements.

This project aims to improve chemodenervation techniques through the knowledge imparted by the

research.
2-90 NIDRR Program Directory FY 2004 - Health and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Oregon

An Innovative Dialysis Regeneration Cartridge for Portable

Hemodialysis

Chemica Technologies, Incorporated

325 Southwest Cyber Drive

Bend, OR 97702-1076

taku@chemica.com

http://www.chemica.com

Principal Investigator: Takuji Tsukamoto, PhD

Public Contact: 541/385-0355; Fax: 541/385-0390

Project Number: H133S030019

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $275,219; FY 04 $224,627

Abstract: This project realizes the development of a light-weight and efficient portable hemodialyzer

for children and adults suffering from end stage renal disease (ESRD); greatly improving their quality

of life by facilitation hemdailysis in any location. Many ESRD patients and their families are severely

limited in their mobility and freedom of life due to the time and effort involved in receiving life-sustaining hemodialysis treatment several times a week at clinics or hospitals. This disabling burden on

patients and their families could be significantly lessened if patients had the option of receiving treatment “on the spot,” whether at work, school or home, using a portable hemodialyzer. The overall

objective of this project is to develop an innovative portable hemodialyzer based on a highly efficient

dialysis regeneration cartridge (DRC). The technical objectives for this phase of research are: (1) to

perform scale-up production of the DRC and to construct the full-scale DRC, (2) to test the

biocompatibility and stability of the DRC, (3) to construct a prototype portable hemodialyzer that

contains the DRC and test in vitro, (4) to construct a mini-DRC and test its efficacy and quality in vivo

using animal models, and (5) to summarize Phase II work and evaluate the process.
Technology for Access and Function

Rehabilitation, biomedical engineering, and assistive technology research has produced

results that have helped people with disabilities to achieve and maintain maximum

physical function, live in their own homes, attain gainful employment, and participate in

and contribute to society. NIDRR’s research addresses a broad range of technology,

including systems of public technology, such as telecommunications and the built

environment and orphan technology for individuals. The research program also

encourages universal design practices.

Contents

Rehabilitation Engineering Research Centers (RERCs) ............................................................................. 3

Disability and Rehabilitation Research Projects ...................................................................................... 26

Field Initiated Projects (FIPs) ............................................................................................................... 38

Small Business Innovative Research (SBIR), Phase I ............................................................................. 69

Small Business Innovative Research (SBIR), Phase II ............................................................................ 80

NIDRR Program Directory FY 2004 - Technology for Access and Function 3-3

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

California

Technologies for Children with Orthopedic Disabilities

Los Amigos Research and Education Institute, Inc. (LAREI)

Rancho Los Amigos National Rehabilitation Center

7503 Bonita Street; Bonita Hall

Downey, CA 90242

info@ranchorep.org

http://www.ranchorep.org

Principal Investigator: Sam Landsberger, ScD; Donald McNeal, PhD

Public Contact: Juan Garibay 562/401-7994 (V); Fax: 562/803-6117

Project Number: H133E003001

Start Date: November 01, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $650,000; FY 01 $760,000; FY 02 $915,172; FY 03 $1,560,000; FY 04

$650,000

Abstract: The goal of this RERC is to improve the lives of children with orthopedic disabilities.

Activities include: (1) conducting research to advance the state of knowledge; (2) disseminating this

information to children and their parents, clinicians, and research investigators; (3) developing and

testing prototype devices that are useful and efficacious; (4) transferring prototypes that have proven

value to the marketplace; and (5) educating engineering students about the special needs of children

with orthopedic disabilities. The research and development program is focused on three of the most

important life activities of children: manipulation, mobility, and play and recreation. Three projects

address the manipulation needs of children with upper limb deficiencies; one documents current fitting

practices of children’s prosthetic clinics throughout North America, while a second develops improved

elbows and prehensors for young children. A third project adds a power assist to the mobile arm

support, a product developed and commercialized during the current grant period. The mobility

projects address the needs of children with cerebral palsy, spinal bifida, SCI, muscle disease, and other

chronic conditions that affect the child’s ability to ambulate. The RERC develops lightweight orthotic

components, evaluates the effectiveness of functional electrical stimulation to correct gait abnormalities

in children with cerebral palsy, and determines the appropriate time to provide children with wheeled

mobility. The RERC program conducts clinical trials at Rancho Los Amigos National Rehabilitation

Center, Shriners Hospital LA, and Children’s Hospital LA. This project participates in the NIDRR

Scholars program, providing motivated undergraduates with internship experience in disability research.
3-4 NIDRR Program Directory FY 2004 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

California

RERC on Spinal Cord Injury: Keep Moving: Technologies to Enhance

Mobility and Function for Individuals with Spinal Cord Injury

Los Amigos Research and Education Institute, Inc. (LAREI)

P.O. Box 3500

Downey, CA 90242

sam@ranchorep.org; rwaters@dhs.co.la.ca.us

http://www.larei.org

Principal Investigator: Samuel Landsburger, ScD; Robert Waters, MD 562/401-7994; 562/401-7161

Public Contact: Julia LaPlount 562/401-8111; Fax: 562/803-5569

Project Number: H133E020732

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 02 $899,974; FY 03 $899,932; FY 04 $899,882; FY 05 $899,961

Abstract: This RERC improves the lives of individuals with SCI by promoting their health, safety,

independence, and active engagement in daily activities. Activities include: (1) monitoring trends and

evolving product concepts that represent future directions for technologies in SCI, (2) conducting

research to advance the state of knowledge, (3) disseminating the information to the population, (4)

developing and testing prototype devices that are useful and effective and transferring them to the

marketplace, (5) advancing employment opportunities for individuals with SCI, and (6) developing

ways to expand research capacity in the field of SCI. The R&D program is focused on a key issue for

individuals with SCI, the need to maintain mobility for as long as possible in order to enhance independent function. A survey of the user population determines where areas of greatest need exist. An active

Mobile Arm Support for adults allows those with limited arm function greater independence. The

shoulder-preserving wheelchair, gait training robotic assist device, and adaptive exercise equipment are

all specifically geared to preserve or enhance mobility in individuals with SCI. A project on optimized

wheelchair suspension keeps people mobile by increasing comfort and reducing tissue loading.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-5

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

California

Smith-Kettlewell Rehabilitation Engineering Research Center

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

rerc@ski.org

http://www.ski.org/Rehab

Principal Investigator: John A. Brabyn, PhD 415/345-2110

Public Contact: Deborah Gilden, PhD 415/345-2000; Fax: 415/345-8455

Project Number: H133E001002

Start Date: August 01, 2000

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 00 $650,000; FY 01 $650,000; FY 02 $650,000; FY 03 $750,000

Abstract: This RERC conducts research and development for persons who are blind or who have

visual impairments. For infants, the project explores a new objective means of identifying and differentiating vision and cognitive impairments using visually-evoked potentials (VEPs), facilitating the

design of optimal rehabilitation plans for each child. For individuals who have co-existing disabilities

(in addition to blindness or a visual impairment), the project explores new solutions for wheelchair

travel and various technologies for wayfinding. It also investigates independent travel technology for

those with combined visual and cognitive impairments. For the older age group, the project explores

practical tools allowing lay personnel to screen and assess visual impairments affecting problems

unique to this age group, so they can be identified and referred to appropriate clinical or rehabilitation

specialists quickly. For consumers who are deaf-blind, the project develops a new generation of

communication devices to expand the functions performed by existing products. It also explores novel

approaches to graphics access by persons who are blind or who are deaf-blind, using virtual reality,

sonification, and force feedback technologies. An innovative program of vocational and daily living

technology development includes intensive interaction with service providers and applications of

computer vision.
3-6 NIDRR Program Directory FY 2004 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Colorado

Rehabilitation Engineering Research Center on Cognitive Technologies

University of Colorado

Health Sciences Center

1245 East Colfax, Suite 200

Denver, CO 80218

cathy.bodine@uchsc.edu

Principal Investigator: Cathy Bodine

Public Contact: 303/315-1281; Fax: 303/837-1208

Project Number: H133E040019

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 04 $850,000; FY 05 $850,000

Abstract: The goal of this RERC is to research, develop, evaluate, implement, and disseminate

innovative technologies and approaches that will have a positive impact on the way in which individuals with significant cognitive disabilities function within their communities and workplace. The Center

incorporates: (1) a consumer-driven model for identifying the most significant barriers to independent

living and workforce; (2) an approach that is balanced and uses both well-established and newly

emerging technologies in its development projects; (3) a focus both on functional limitations and

specific disabilities; and (4) mutually beneficial partnerships with private industry and public agencies.

Research activities include: Needs, knowledge, barriers, and uses of AT by persons with cognitive

disabilities; technology for remote family support for people with cognitive disabilities; influences on

AT use, non-use, and partial, and inappropriate use by persons with traumatic brain injury; AT enhancement of written expression for children and adults; needs assessment: creating affordable, context-aware technologies; and technology to promote decision-making skills and self-determination for

students with cognitive disabilities. Development activities include: Design, implementation, and

deployment of context aware technologies for persons with cognitive disabilities residing in community living environments; development of HealthQuest, an Internet-based product that enables individuals with intellectual disabilities to become active participants in their own health care; XML

repository of common tasks; batteryless micropower sensors for context aware technologies; perceptive

animated interfaces for workforce training; and environmentally appropriate behavioral cues for

individuals with TBI.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-7

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

District of Columbia

Rehabilitation Engineering Research Center on Hearing Enhancement

Gallaudet University

Division of Audiology and Speech-Language Pathology

800 Florida Avenue, NE

Washington, DC 20002

matthew.bakke@gallaudet.edu

http://www.hearingresearch.org

Principal Investigator: Matthew H. Bakke, PhD 202/651-5335

Public Contact: 202/651-5335 (V/TTY); Fax: 202/651-5324

Project Number: H133E030006

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $949,999; FY 04 $949,024; FY 05 $949,480

Abstract: The mission of this RERC is to build and test components of a new, innovative model of

aural rehabilitation tools, services, and training, in order to improve assessment and fitting of hearing

technologies and to increase the availability, knowledge and use of hearing enhancement devices and

services. Component A: (1) develops and evaluates new methods for field evaluation and fitting of

hearing aids; (2) develops and evaluates techniques to enhance auditory self-monitoring; and (3)

develops methods for predicting the speech-to-interference ratio and intelligibility of speech for a

hearing aid when used with a wireless telephone. Component B conducts a needs assessment survey

of people who use hearing technologies and evaluate the use of Bluetooth technology as a means of

improving and expanding wireless connection to a hearing aid. Component C investigates environmental factors affecting children’s speech recognition abilities in classroom settings. Component D

investigates the use of distortion product otoacoustic emission and reflectance for diagnosis of hearing

loss and tinnitus; and creates and standardizes sets of synthesized nonsense syllables for use in hearing

aid research. Component E develops a new, innovative model for the delivery of aural rehabilitation

(AR) services to adults with hearing loss. In addition the RERC conducts a program of training and

dissemination that will reach a diverse audience of people, both consumers and professionals.
3-8 NIDRR Program Directory FY 2004 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Florida

Rehabilitation Engineering Research Center on Technology for

Successful Aging

University of Florida

101 South Newell Drive, Suite 2101

Gainesville, FL 32611

wmann@hp.ufl.edu

http://www.rerc.ufl.edu

Principal Investigator: William C. Mann, PhD 352/392-2617

Public Contact: Kathy Locklear, Information Coordinator 352/392-2617 (V/TTY)

Project Number: H133E010106

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 01 $900,000; FY 02 $900,000; FY 03 $899,999; FY 04 $900,000

Abstract: The RERC-Tech-Aging conducts research, development, education, and information

dissemination work on technology for successful aging. Projects of the RERC focus on the closely

related areas of communications, home monitoring, and “smart” technologies. The technology driving

the focus for this RERC is developing rapidly and requires an understanding of current and emerging

technology areas, including wireless technology, computers, sensors, user interfaces, control devices,

and networking. Successful integration of this technology into products and systems for older persons

requires an understanding of their complex health, independence, and quality-of-life issues. The

RERC-Tech-Aging tests currently available home monitoring products and demonstrates their effectiveness in relation to independence, quality of life, and health related costs. The RERC-Tech-Aging

also identifies needs and barriers to home monitoring and communication technology, and addresses

needs of special populations including rural-living, elders, and people aging with disability. The

RERC-Tech-Aging brings together national expertise to meet this challenge, including major universities, industry leaders working in this area, major aging or aging-related organizations, major federal

agencies that relate to funding or services in this area, other NIDRR-funded RERCs and RRTCs, and

service-related organizations that assist in identifying study participants.s:
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-9

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Mobile Wireless

Technologies for Persons with Disabilities

Georgia Centers for Advanced Telecommunications Technology (GCATT)

Georgia Institute of Technology

250 - 14th Street NW

Atlanta, GA 30318

rerc@gcatt.gatech.edu

http://www.wirelessrerc.org

Principal Investigator: Helena Mitchell, PhD; Michael Jones, PhD (Shepherd Center); John Peifer

(Georgia Tech) 404/894-0058 (Mitchell); 404/350-7595 (Jones); 404/894-7028 (Peifer)

Public Contact: Jennifer Pasley 404/385-4075; Fax: 404/894-1445

Project Number: H133E010804

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $1,000,000; FY 02 $1,000,000; FY 03 $1,000,000; FY 04 $1,000,000; FY

05 $1,000,000

Abstract: This RERC develops appropriate and effective applications of wireless technologies that

enhance the independence of people with disabilities. With an overall goal of promoting independence

and autonomy of people with disabilities, the RERC has two primary aims: (1) ensure equitable access

to mobile wireless products and services by people with disabilities of all ages and abilities; and (2)

investigate promising applications of mobile wireless technologies in support of employment, independent living, and community integration of people with disabilities. To accomplish these aims, the

RERC is organized into three main sections: (1) the Research Section investigates needs, policies, and

promising applications of mobile wireless technologies to promote independence. Research initiatives

include assessment of user needs, evaluation of emerging technologies, and policy initiatives that

influence the practices, policies, and regulations that affect accessibility of wireless technologies, (2)

the Development Section includes projects that address universal access, investigation of new applications of wireless technologies, and innovative design solutions to support independent living of people

with disabilities, (3) the Training and Dissemination Section promotes the synthesis of new knowledge

into practice.
3-10 NIDRR Program Directory FY 2004 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Workplace

Accommodations

Georgia Institute of Technology

Center for Assistive Technology & Environmental Access

490 10th Street, NW

Atlanta, GA 30318

workrerc@catea.org

http://www.workrerc.org

Principal Investigator: Karen Milchus; Jon Sanford 404/894-0393

Public Contact: Karen Milchus 800/726-9119 404/894-1414; Fax: 404/894-9320

Project Number: H133E020720

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $899,997; FY 03 $900,000; FY 04 $899,999; FY 05 $899,999

Abstract: This RERC identifies, designs, and develops devices and systems to enhance the workplace

productivity of people with disabilities. Universal design is a primary focus of the Center making the

design of products and environments usable by all workers to the greatest extent possible, without the

need for adaptation or specialized design. The RERC’s research projects evaluate existing workplace

products and services and determine areas where further product development is needed. The Center

also studies archival materials to identify factors that contribute to successful or unsuccessful outcomes,

and analyzes policies and practices that may influence the nature and availability of workplace accommodations for persons with disabilities. The RERC’s development activities focus on Remote Services

and Universal Design in the Workplace. The Remote Services projects investigate ways that remote

technologies such as videoconferencing and telework can be used to facilitate employment and provide

technical support services to people with disabilities. The Universal Design projects work with manufacturers to develop new generations of universally designed and accessible products. Digital human

modeling tools developed by the project provide visualizations of products or systems with human

interaction and movement and reduce the need for preliminary physical prototypes. Products are

developed for workers in office, manufacturing, retail/sales, service industry, and other environments.

Finally, training, technical assistance, and dissemination activities on workplace accommodations and

universal design promote the transfer of new knowledge into practice.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-11

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Georgia

Rehabilitation Engineering Research Center on Wheeled Mobility

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

randy.bernard@arch.gatech.edu

http://mobilityrerc.catea.org/

Principal Investigator: Stephen H. Sprigle, PhD; Randy Bernard 404/385-4302 (Sprigle); 404/385-

4691 (Bernard)

Public Contact: Randy Bernard 404/385-4691; Fax: 404/894-9320

Project Number: H133E030035

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 03 $949,988; FY 04 $949,951; FY 05 $949,975

Abstract: The goal of this RERC is to undertake a major shift in the way wheeled mobility is conceptualized and understood, from the design of assistive devices that enable some individuals to perform

some activities, to the design of a broad range of interventions that enable as many individuals as

possible to actively engage and participate in everyday community life. Research activities include: (1)

User Needs and Design Input uses participatory focus groups to identify needs of wheelchair users; (2)

User Needs of Older Adults assesses the needs of older adults living at home and in other residential

settings; (3) Effects of Environment and Mobility Technology on Participation and Activity measures

the influences of environmental barriers and specialized wheelchair technology on participation and

activity in everyday life; (4) Efficacy of Animation and Visualization Training uses computer simulation techniques to investigate their efficacy in improving mobility training; and (5) Clinical and Functional Implications of Seating Standards and Guidelines studies the relationship between standardized

measures of cushion performance and actual impact on wheelchair users. Development efforts include:

(1) development and marketing of new mobility devices in collaboration with industry design partners;

(2) development of a wheelchair for frail elders that can be used in any residential environment; (3)

interventions to overcome barriers to participation including guidelines and technologies to help

wheelchair users overcome environmental and technological barriers; (4) development of animation

and visualization training through computer simulations to improve training in transfers and outdoor

mobility; and (5) development of valid wheelchair cushion test methods which enables clinicians to

prescribe appropriate wheelchair cushions based on positioning and load distribution.
3-12 NIDRR Program Directory FY 2004 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Recreational

Technologies and Exercise Physiology Benefiting Persons with

Disabilities (RERC RecTech)

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Suite 712

Chicago, IL 60608-6904

jrimmer@uic.edu

http://www.rercrectech.org

Principal Investigator: James H. Rimmer, PhD

Public Contact: 312/413-9651; Fax: 312/355-4058

Project Number: H133E020715

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $899,536; FY 03 $899,725; FY 04 $899,942; FY 05 $899,756

Abstract: This program researches access to recreational opportunities and physical endurance of

people with disabilities, targeting four primary areas: (1) increased access to fitness and recreation

environments; (2) interventions to increase physical activity and recreation participation; (3) adherence

strategies to reduce physical activity relapse and dropout rates; and (4) randomized clinical trials to

evaluate improvements in health and function. Research and development projects include: (1) a

comprehensive needs assessment that involves ongoing assessment of consumer needs as they pertain

to existing and emerging recreational and fitness technologies; (2) research on the use of information

technology and a newly designed environmental accessibility instrument for facilitating access to

recreational and fitness environments and promoting improved health and function; (3) research on the

use of “teleexercise” technology for promoting participation and for monitoring intensity and physiological/psychological outcomes of home-based exercise programs; (4) development of broadly

applicable aftermarket accessory kits for adapting existing cardiovascular exercise equipment for use

by people with disabilities and determining the efficacy of the new adaptions in improving fitness; (5)

development of technology to allow users adaptive control of exercise machines; and (6) development

of an online RecTech solutions database of currently available recreational and fitness technologies to

make available solutions more accessible to consumers. Two training projects promote capacity building for future recreation, fitness, exercise physiology, engineering, and rehabilitation professionals, and

two additional training projects support professional development.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-13

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

RERC on Rehabilitation Robotics and Telemanipulation: Machines

Assisting Recovery from Stroke (MARS)

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1406

Chicago, IL 60611-4496

medevitt@rehabchicago.org

http://www.smpp.nwu.edu/MARS/mars.html

Principal Investigator: W. Zev Rymer, MD, PhD

Public Contact: Mary-Ellen Devitt 312/238-3919; Fax: 312/908-2208

Project Number: H133E020724

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 02 $805,453; FY 03 $874,845; FY 04 $896,518; FY 05 $888,042

Abstract: This program centers its research and development on restoring function in hemispheric

stroke survivors. Five projects assess five different approaches that have the potential to improve

performance of the upper extremity, and one project attempts to restore locomotion. These projects

include: (1) robotic therapy for force training of the upper extremity in chronic hemiparetic stroke; (2)

gait restoration in hemiparetic stroke patients using goal-directed, robotic-assisted treadmill training; (3)

development of a robotic system with an augmented reality interface for rehabilitation of brain-injured

individuals; (4) rehabilitation of finger extension in chronic hemiplegia; and (5) a home-based

telerehabilitation system for improving functional hand and arm movement recovery following stroke.

In addition to these projects, the RERC develops tools for training research and development of a

variety of client populations including medical students, physician residents, graduate students in

engineering and neuroscience, and allied health clinicians, including physical and occupational therapists. The broad intent is to develop devices that assist the therapist in providing treatments that are

rationally based, intensive, and long in duration. This project is a collaboration of the Rehabilitation

Institute of Chicago, the National Rehabilitation Hospital in Washington, D.C., Catholic University,

the University of Illinois at Chicago, and the University of California at Irvine.
3-14 NIDRR Program Directory FY 2004 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center in Prosthetics and

Orthotics

Northwestern University

Feinberg School of Medicine

345 East Superior Street, Room 1441

Chicago, IL 60611

reiu@northwestern.edu; d-childress@northwestern.edu; sgard@northwestern.edu

http://www.repoc.northwestern.edu

Principal Investigator: Dudley S. Childress, PhD; Steven A. Gard, PhD 312/238-6500

Public Contact: Resource Unit Help Line 312/238-6524 (V); 312/238-6530 (TTY); Fax: 312/238-

6510

Project Number: H133E030030

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,998; FY 04 $950,000; FY 05 $949,999

Abstract: This Center conducts ten research projects, three of which are pilot studies. In the area of

human locomotion the objectives are to conduct quantitative studies that include non-disabled gait,

modeling of gait, roll-over shape influence on transtibial amputee gait, gait initiation, shock absorption

studies, the role of the spine in walking, transfemoral socket design studies, and evaluation of stancecontrol orthotic knee joints. Pilot studies, where preliminary data is not available, are proposed on

partial foot prothesis/orthosis systems, on evaluation of Ankle Foot Orthoses (AFOs) and on the design

of a Shape & Roll foot for children. Six developmental projects include a simple gait monitoring

instrument (Direct Ultrasound Ranging System), a new prosthetic ankle joint that adapts to inclines,

and a manual through which individuals in low-income countries can make their own artificial feet. In

addition, two upper-limb prosthetics development projects are proposed that deal with reaching,

manipulation, and grasping. Finally, an outcomes measurement tool is developed for prosthetics and

orthotics (P&O) facilities in their reporting to the American Board of Certification (ABC). The vision

for this RERC is to improve the quality of life for persons who use prostheses and orthoses through

creative applications of science and engineering to the P&O field. The goal is to uncover new knowledge and understanding in P&O and to bring more quantification to the field, which will enable them

to develop new concepts and devices to improve the quality, cost-effectiveness, and delivery of P&O

fittings.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-15

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Illinois

Rehabilitation Engineering Research Center on Technology Access for

Land Mine Survivors

Center for International Rehabilitation

211 E. Ontario St Suite 300

Chicago, IL 60611

kreisinger@cirnetwork.org

http://www.cirnetwork.org

Principal Investigator: William Kennedy Smith, MD; Kim D. Reisinger, PhD; Yeongchi Wu, MD

312/229-1359 ext. 248

Public Contact: Maggie Coleman, Communications Officer 312/229-1359 x248; Fax: 312/229-1359

Project Number: H133E030017

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 03 $950,000; FY 04 $950,000; FY 05 $950,000

Abstract: The Center strives to improve the quality and availability of amputee and rehabilitation

services for landmine survivors by focusing on the development of “appropriate technology”, i.e.

technology that is most suitable to the limited technical and human resources available in most mineaffected regions through the application of research methodologies, the development of mobility aids,

and the creation of educational materials, all of which are designed specifically for mine-affected

populations and disseminated through a network of rehabilitation service providers in mine-affected

regions. Laboratory-based research projects investigate issues of importance relating to transtibial (TT)

alignment, ischial containment socket trim lines as they relate to the gait of transfemoral (TF) amputees,

and the evaluation of a non-toxic resin for the direct lamination of prosthetic sockets. Field-based

research evaluates an anatomically based transtibial alignment methodology and a wheelchair prototype manufacturing and dissemination strategy. Development projects, many of which contain research

components, can be classified into two areas: those that improve the service delivery through improved

fabrication techniques, and those that develop appropriate prosthetic components and mobility aids. In

order to promote the successful transfer of techniques and technologies that are developed, the RERC

creates training materials that describe the manufacture, assembly, and use of the technique or devices

developed under the research and development program. Additionally, because the current number of

trained prosthetic technicians in developing countries is far from sufficient to adequately meet the

needs of landmine survivors, the center produces education and training materials covering the basic

science of prosthetics and orthotics. All materials are adapted to the specific languages, culture and

needs of the mine-affected regions served by the RERC and distributed through a blended distance

learning network.
3-16 NIDRR Program Directory FY 2004 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering and Research Center (RERC) on Universal

Design and the Built Environment at Buffalo

State University of New York (SUNY) at Buffalo

Department of Architecture

378 Hayes Hall

Buffalo, NY 14214

rercud@ap.buffalo.edu

http://www.ap.buffalo.edu/idea; http://www.ap.buffalo.edu/rercud

Principal Investigator: Edward Steinfeld, ArchD 716/829-3485, ext. 327

Public Contact: Danise Levine 716/829-3485, ext. 330; Fax: 716/829-3861

Project Number: H133E990005

Start Date: November 01, 1999

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $599,965; FY 00 $599,952; FY 01 $599,932; FY 02 $799,835; FY 03

$799,953; FY 04 $0 (No-cost extension through 10/31/2005)

Abstract: The RERC on Universal Design and the Built Environment promotes the adoption of

universal design. Research programs include the Prototype Anthropometric Database Project, a research database on anthropometrics of wheelchair users for application to ergonomic design, and The

Buildings in Use Project that demonstrates the benefits of universal design by conducting post-occupancy evaluations of buildings currently in use. Product development efforts include development of

prototypes for innovative universally designed products, evaluation and testing of these prototypes, and

commercialization assistance to facilitate bringing each prototype to market. The Visitability Initiative

conducts training and action research in eight cities to develop visitability demonstration projects, and

is a collaboration with Concrete Change, a consumer advocacy organization focusing on making

housing “visitable” by people with disabilities. The RERC’s activities also include universal design

education and technical assistance, along with publication and dissemination of universal design

resources.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-17

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

New York

Rehabilitation Engineering Research Center on Technology Transfer

(T2RERC)

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

322 Kimball Tower

Buffalo, NY 14214-3079

jimleahy@acsu.buffalo.edu

http://cosmos.buffalo.edu/t2rerc

Principal Investigator: Steve Bauer, PhD 716/829-3141, ext. 117

Public Contact: James Leahy 716/829-3141 (V); 800/628-2281 (TTY); Fax: 716/829-2420

Project Number: H133E030025

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 03 $949,999; FY 04 $950,000; FY 05 $950,000

Abstract: The activities of this project transfer and commercialize new and improved assistive devices,

conduct research to improve technology transfer practice, and support other stakeholders involved in

the technology transfer process. Four research projects investigate innovative ways to facilitate and

improve the process of technology transfer for all stakeholders: (1) Identify Innovative Technology

Transfer Practices - draws critical success factors from examples of retrospective and prospective AT

transfer case studies in various sectors; (2) Identify Innovative Technology Transfer Policies - traces the

outputs and outcomes of Federal transfer programs supporting AT related projects and assesses their

efficacy; (3) Facilitate AT Industry Innovation through Focused Market Research - provides a context

for transfer opportunities involving the AT industry and for public policy decision making; and (4)

Assess the Efficacy of Transferred Products - determines the extent to which products previously

transferred through the T2RERC impact the functional capabilities of consumers. Four development

projects increase the number and quality of successful transfers from RERC’s and other sources: (1)

Transfer Products through a Supply Push Approach - facilitates the movement of new or improved

prototype inventions to the marketplace through licenses, sales, or entrepreneurial ventures; (2) Transfer Technologies through a Demand Pull Approach - validates technology needs within the AT industry and introduces advanced technology solutions to address those needs; (3) Improve the Accessibility

of New Mainstream Products - extends participatory research to integrate consumers’ functional

requirements into the design of new mainstream products; and (4) Facilitate RERC Transfer Activity

Through Informatics - establishes a pilot informatics infrastructure and assesses its utility for increasing

communication, collaboration, and transfers between RERC’s.
3-18 NIDRR Program Directory FY 2004 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

North Carolina

Rehabilitation Engineering Research Center on Communication

Enhancement

Duke University

Department of Surgery

Division of Speech Pathology and Audiology

Duke University Medical Center, Box 3888

Durham, NC 27710

aac-rerc@mc.duke.edu

http://www.aac-rerc.com

Principal Investigator: Frank DeRuyter, PhD 919/684-6271

Public Contact: Kevin Caves, ME, ATP 919/681-9983; Fax: 919/681-9984

Project Number: H133E030018

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $949,977; FY 04 $949,973; FY 05 $949,974

Abstract: The mission of this RERC is to assist people who use AAC technologies in achieving their

goals across environments. The goals and objectives of the RERC are to advance and promote AAC

technologies through the outputs and outcomes of research and development activities and to support

individuals who use, manufacture, and recommend these technologies in ways they value. Research

projects cover the following areas: (1) improving AAC technology to better support societal roles; (2)

enhancing AAC access by reducing cognitive/linguistic load; and (3) enhancing AAC usability and

performance. Projects address issues of literacy, telework, specialized vocabulary, contextual scenes

and intelligent agents, improving interface performance, and monitoring and simulating communication

performance. Development activities include: (1) technology and policy watch; (2) new interfaces; and

(3) reducing the cognitive/linguistic burden on AAC users. Activities address monitoring emerging

technologies, standards, and policies; technologies to supplement intelligibility of residual speech,

dysarthric speech, and gesture recognition; brain interface; AAC WebCrawling; and enhancing the role

of listeners in AAC interactions.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-19

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Oregon

National Center for Accessible Public Transportation

Oregon State University

Apperson Hall 202

Corvallis, OR 97331-2302

ncat@oregonstate.edu

http://ncat.oregonstate.edu/

Principal Investigator: Katharine Hunter-Zaworski, PhD

Public Contact: Julie Barlow 800/916-0099; Fax: 541/737-3052

Project Number: H133E030009

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 03 $949,479; FY 04 $949,259; FY 05 $949,044

Abstract: This RERC addresses the need for improvements in the accessibility of public transportation. This center is both important and timely because of major changes in the travel industry, and the

need to adapt to those changes in a way that provides safe and dignified travel for persons with disabilities. The transportation focus of this RERC is inter-city travel via air, rail, and bus. Air, rail, and

over-the-road buses (OTRB) account for nearly all of the inter-city public transportation. Accessibility

issues focus on persons with mobility, agility, and hearing disabilities and account for a large percentage of persons with disabilities. Two areas of research are addressed: (1) the biomechanics of wheelchair transfers in confined spaces; and (2) the perceptions, reactions, and attitudes of subjects towards

existing and proposed accessibility solutions. The biomechanics studies include the use of a sophisticated six-camera motion analysis system in conjunction with force plates to determine the motions and

forces involved in dependent and independent transfers in confined spaces, such as an aircraft aisle.

The survey-based study includes comprehensive surveys of six different groups that are directly

involved with accessibility issues including travelers with disabilities, non-travelers with disabilities,

and employees of airlines and airports, OTRB operators, OTRB manufacturers, aircraft manufacturers,

and rail operators. Drawing on results of their research, the RERC focuses on four development topics:

(1) vehicle boarding technologies; (2) real time passenger information and communications systems;

(3) accessible lavatories; and (4) passenger assistance training tools and techniques.
3-20 NIDRR Program Directory FY 2004 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Wheeled Mobility

University of Pittsburgh

School of Health and Rehabilitation Sciences

Department of Rehabilitation Science and Technology

Forbes Tower, Suite 5044

Pittsburgh, PA 15260

dbrienza@pitt.edu

http://www.rercwm.pitt.edu

Principal Investigator: David M. Brienza, PhD; Clifford Brubaker, PhD

Public Contact: Mary Jo Geyer, PhD, Associate Director 412/383-6571 (V); 412/383-6598 (TTY);

Fax: 412/383-6597

Project Number: H133E990001

Start Date: January 01, 1999

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 99 $900,000; FY 00 $900,000; FY 01 $900,000; FY 02 $1,064,561; FY 03

$115,743; FY 04 $0 (No-cost extension through 6/30/2005)

Abstract: The RERC on Wheeled Mobility investigates the use of dynamic seating for reducing

spasticity and enhancing seating comfort; investigates the biomechanical characteristics of soft tissue

related to the risk of developing pressure ulcers and the relationship between pressure measurements

and pressure ulcer incidence, develops and validates the use of outcomes measures for seating and

mobility intervention; and investigates the use of the web as a seating decision support tool for consumers. This project also develops and evaluates a comparative data source for use in decision support

of wheelchair selection, an interface for integrating external devices with powered wheelchairs; wheelchair seating standards, standardized postural measures, injury prevention wheelchair technologies, and

enhanced controls for powered wheelchairs.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-21

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Wheelchair

Transportation Safety

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

Forbes Tower, Suite 5044

Pittsburgh, PA 15260

tkarg@pitt.edu

http://www.rercwts.pitt.edu

Principal Investigator: Patricia Karg 412/383-6601

Public Contact: Jean Webb 412/383-6586; Fax: 412/383-6597

Project Number: H133E010302

Start Date: November 01, 2001

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 01 $868,840; FY 02 $899,057; FY 03 $897,745; FY 04 $899,264; FY 05

$898,054

Abstract: This RERC aims to improve the safety of wheelchair users who remain seated in their

wheelchair while using public and private motor-vehicle transportation. RERC tasks investigate and

develop new wheelchair tiedown and occupant restraint system technologies, including wheelchairintegrated restraints and universal docking concepts, that enable wheelchair users to secure and release

their wheelchair independently and quickly, and use an effective occupant restraint system without the

need for assistance. The RERC also researches the issues and factors involved in providing improved

occupant protection to wheelchair-seated drivers and passengers in rear and side impacts, and uses a

multifaceted approach, including in-depth investigations of real-world accidents, to investigate the

incidence, severity, and causes of injuries to wheelchair-seated occupants in different sizes of vehicles

and in different types of crashes and non-impact incidents experienced during vehicle motion. In

particular, this RERC explores the need for, and suitability of, using different levels of wheelchair

securement and occupant restraint in larger public transit vehicles, with the goal of recommending and

developing equipment and systems that provide for a safe ride and that are more compatible with the

operational needs of the transit environment. The program includes a comprehensive research and

development effort that involves consumers, manufacturers, students, clinicians, transport providers,

and rehabilitation technology experts. The RERC also has active programs of information dissemination, training, and technology transfer using personnel, mechanisms, and facilities that have been

previously established at the University of Pittsburgh/University of Michigan.
3-22 NIDRR Program Directory FY 2004 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Pennsylvania

Rehabilitation Engineering Research Center on Telerehabilitation

University of Pittsburgh

School of Health and Rehabilitation Sciences

Rehabilitation Science and Technology

Forbes Tower, Suite 5044

Pittsburgh, PA 15260

dbrienza@pitt.edu

Principal Investigator: David M. Brienza, PhD 415/383-6591

Public Contact: Jean Webb 412/383-6586 (V); 412/383-6598 (TTY); Fax: 412/383-6597

Project Number: H133E040012

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 04 $849,890; FY 05 $849,930

Abstract: The vision of this RERC is to serve people with disabilities by researching and developing

methods, systems, and technologies that support remote delivery of rehabilitation and home health care

services for individuals who have limited local access to comprehensive medical rehabilitation outpatient and community-based services. Research and development activities include: (1)

Telerehabilitation Infrastructure and Architecture: development of an informatics infrastructure and

architecture that builds on existing programs and technologies of the University of Pittsburgh Medical

Center’s e-Health System, supports the RERC’s research and development activities, meets HIPAA

requirements, provides a test-bed for third party telerehabilitation applications, and can be used as a

model for future telerehabilitation infrastructure; (2) Telerehabilitation Clinical Assessment Modeling:

development of a conceptual model for matching consumers with telerehabilitation technology. The

model is user-oriented and driven by consumer experiences regarding satisfaction, simplicity, and

reimbursability of telerehabilitation; (3) Teleassessment for the Promotion of Communication Function

in Children with Disabilities: development of a web-based teleassessment infrastructure that links

therapists and child participants, allowing therapeutic content to be adapted to the child’s individual

progress and abilities; (4) Remote Wheeled Mobility Assessment: determines if individuals with

mobility impairments can obtain appropriate prescriptions for wheeled mobility devices through the use

of a telerehabilitation system based upon information and telecommunications technologies; (5) Behavioral Monitoring and Job Coaching in Vocational Rehabilitation: researches technologies to conduct

remote delivery of rehabilitation services to individuals who have limited access to rehabilitation

services that are necessary to participate in and achieve education and employment outcomes in their

community; (6) Remote Accessibility Assessment of the Built Environment: determines the effectiveness of a remote accessibility assessment system in evaluating the built environment of wheeled mobility device users.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-23

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Universal Interface and

Information Technology Access

University of Wisconsin/Madison

Trace Research and Development Center

2107 Engineering Centers Building

1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

http://trace.wisc.edu/itrerc

Principal Investigator: Gregg C. Vanderheiden, PhD 608/263-5788

Public Contact: Kate Vanderheiden 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E030012

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 03 $1,000,000; FY 04 $1,000,000; FY 05 $1,000,000

Abstract: The focus of this RERC is on both access to information (e.g., content) in its various forms,

as well as access to interfaces used within content and by electronic technologies in general. The

research and development program is carefully designed to provide an interwoven set of projects that

together advance accessibility and usability in a fashion that takes into account, and supports, the full

range of access strategies used by manufacturers and people with disabilities. These strategies range

from enhancing the design of mainstream products that can be used by individuals with different ability

sets to enhancing the ability of users to deal with the information and interfaces as they encounter

them. Key to these projects are the development of new models and approaches for characterization of

the functional requirements of current and future interfaces, and a better understanding of the type,

diversity, and similarity of functional limitations across etiologies and disabilities. Research activities

include: model generation and initial pilot studies for the characterization of interface requirements

(current and emerging) and cross-disability user abilities; abstract user interfaces and human interface

sockets; emerging technologies and future research needs; and accessible real-time visual information

presentation in meetings and virtual meetings. Development projects include: tools to facilitate the

incorporation of cross-disability interface features in public information technologies; tools to facilitate

AT-IT interoperability; server-based and “virtual assistive technology; “ and support for national and

international standards and guidelines efforts.
3-24 NIDRR Program Directory FY 2004 - Technology for Access and Function

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Telecommunication

Access

University of Wisconsin/Madison

Trace Center, College of Engineering

2107 Engineering Centers Building

1550 Engineering Drive

Madison, WI 53706

info@trace.wisc.edu

http://trace.wisc.edu/telrerc

Principal Investigator: Gregg C. Vanderheiden, PhD (Trace); Judy Harkins, PhD (Gallaudet

University) 608/263-5788 (Trace); 202/561-5257 (Gallaudet)

Public Contact: Kate Vanderheiden 608/265-4621 (V); 608/263-5408 (TTY); Fax: 608/262-8848

Project Number: H133E040013

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $850,000; FY 05 $850,000

Abstract: The focus of this RERC is on advancing accessibility and usability in existing and emerging

telecommunications products for people with all types of disabilities. Telecommunications accessibility

is addressed along all three of its major dimensions: user interface, transmission (including digitization,

compression, etc.), and modality translation services (relay services, gateways, etc.). Research and

development projects cover three areas: (1) development of tools, techniques, and performance-based

measures that can be used to evaluate current and evolving telecommunication strategies including

visual communication and cognitive access; (2) solving the problems faced by individuals using

hearing aids or cochlear implants with digital phones (including development of tools that users can

employ to match appropriate hearing technologies with telecommunication technologies); and (3)

improving access to emerging telecommunications for people with visual, hearing, physical, and

cognitive disabilities – particularly digital and IP-based systems including emergency communication.

The RERC looks at advances that have both short- and long-term outcomes related to assistive technologies (AT), interoperability, and universal design of telecommunications. In addition, the RERC

provides technical assistance to government, industry, and consumers, training for industry, and education for new researchers in this field. The RERC is a collaboration of the Trace Center at the University of Wisconsin and the Technology Access Program at Gallaudet University.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-25

Rehabilitation Engineering Research Centers (RERCs) Rehabilitation Engineering Research Centers (RERCs)

Wisconsin

Rehabilitation Engineering Research Center on Accessible Medical

Instrumentation

Marquette University

Department of Biomedical Engineering

P.O. Box 1881

Milwaukee, WI 53201

jack.winters@marquette.edu

http://www.rerc-ami.org

Principal Investigator: Jack Winters, PhD; Molly Follette Story, MS 414/288-6640 (Winters); 707/

578-6839 (Story)

Public Contact: June Isaacson-Kailes 310/821-7080 800/832-0524; Fax: 909/469-5503

Project Number: H133E020729

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $901,131; FY 03 $899,614; FY 04 $899,155; FY 05 $899,870

Abstract: The RERC on Accessible Medical Instrumentation: (1) increases knowledge of, access to,

and utilization of healthcare instrumentation and services by individuals with disabilities; (2) increases

awareness of and access to employment in the healthcare professions by individuals with disabilities;

and (3) serves as a national center of excellence for this priority topic area. Specific research projects

include: (1) needs analysis for people with disabilities as both recipients and providers of healthcare

services, and for manufacturers of healthcare instrumentation; (2) usability analyses to determine what

makes certain medical instrumentation either exemplary or problematic yet essential to healthcare

service delivery; (3) accessibility and universal usability analysis to identify classification and measurement approaches that could be used to explore metrics for accessibility of medical instrumentation; and

(4) policy analyses to explore how medical policies affect healthcare utilization and employment in the

healthcare professions of persons with disabilities. Specific development projects include: (1) development of tools for usability and accessibility analysis; (2) development of modified and new accessible

medical instrumentation; (3) monitoring of, and involvement in development of, emerging, accessible

healthcare technologies; and (4) development of design guidelines for accessible medical instrumentation and model policies for healthcare service delivery.
3-26 NIDRR Program Directory FY 2004 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Wayfinding Technologies for People with Visual Impairments: Research

and Development of an Integrated Platform

Sendero Group, LLC

1118 Maple Lane

Davis, CA 95616-1723

mikemay@senderogroup.com

http://www.senderogroup.com

Principal Investigator: Michael May

Public Contact: 530/757-6800; Fax: 530/757-6700

Project Number: H133A011903

Start Date: December 01, 2001

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $449,065; FY 02 $449,895; FY 03 $449,444; FY 04 $445,486; FY 05

$447,929

Abstract: This project develops a hardware and software platform that provides accessible location

and navigation information for people who are blind or who have visual impairments who are traveling

in indoor and outdoor environments. Development activities focus on creating an effective user interface and developing a common hardware and software platform that exploits the Global Positioning

System (GPS) and other current and emerging navigation technologies. Specific activities include

integrating navigation aids that have been developed by Sendero LLC (GPS Talk) and by the University of California-Santa Barbara/CMU group headed by Jack Loomis (the Personal Guidance System,

or PGS). The platform also accesses information from other devices, including Talking-Signs type

devices, intersection signalization controls, an indoor digital sign system to be developed during this

project at the University of Minnesota, a spatialized tactile stimulator to be developed at UCSB, a dead

reckoning pedestrian navigation system, and cellular phones with GPS capabilities. For navigating in

outdoor environments, a system could aid pedestrians who are blind at complex intersections and

roundabouts, and devices could assess and prevent veer.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-27

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Community Research for Assistive Technology

California Foundation for Independent Living Centers (CFILC)

660 J Street, Suite 270

Sacramento, CA 95814

myisha@cfilc.org

http://www.atnet.org/CR4AT/Press/Intro.NIDRR.Press.Release.html

Principal Investigator: Tanis Doe, PhD

Public Contact: Myisha Reed, Project Coordinator 916/325-1690 (V); 916/325-1695 (TTY); Fax:

916/325-1699

Project Number: H133A010702

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 01 $299,910; FY 02 $299,893; FY 03 $229,150; FY 04 $229,534; FY 05

$299,050

Abstract: This project increases the capacity of the independent living community to work with its

members and stakeholders to collect research data on access and use of AT to improve the lives of

people with disabilities. Using a participatory research approach, the California Foundation for Independent Living Centers (CFILC) is using an ecological model to develop cumulative research data on

the use of and access to AT by people with disabilities. University researchers train participants in

research methods and assist with data collection and analysis. Community advocates conduct focus

groups, surveys, and action research in their respective regions. Advocates also train university students in community-based research related to AT and independent living.
3-28 NIDRR Program Directory FY 2004 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Georgia

Information Technology Technical Assistance and Training Center

(ITTATC)

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street, NW

Atlanta, GA 30318

ittac@arch.gatech.edu

http://www.ittatc.org

Principal Investigator: Mimi Kessler

Public Contact: 404/894-0953; Fax: 404/894-9320

Project Number: H133A000405

Start Date: November 01, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $1,500,000; FY 01 $1,500,000; FY 02 $1,500,000; FY 03 $1,500,000; FY

04 $1,500,000

Abstract: This project provides information, training, and technical assistance to support the implementation of Section 508 of the Rehabilitation Act and Section 255 of the Telecommunications Act to

industry, state officials, trainers and consumers. The Center promotes the benefits of universal design to

technology manufacturers, product designers and engineers, technical writers, marketers, and purchasers of applicable technologies. It also works closely with federal regulatory agencies including the

Federal Communications Commission, the Access Board, the Department of Justice, and the General

Services Administration to advance understanding and knowledge utilization of approaches to the

requirements of Sections 255 and 508 through training and technical assistance activities. The Information Technology Technical Assistance and Training Center is a collaborative project between the

Center for Assistive Technology and Environmental Access at Georgia Institute of Technology,

Inclusive Technologies, World Institute on Disability, University of Iowa Law, Health Policy and

Disability Center in Washington DC, Trace Center at the University of Wisconsin Madison, NIDRR’s

Disability and Business Technical Assistance Centers, Ideal-Group, Georgia Tech Research Institute,

and ITTATC’s National Advisory Council among others. It also has a National Advisory Counsel with

representatives from all industries affected by the amended sections and experts in the field of accessibility.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-29

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Iowa

Technology for Independence: A Community-Based Resource Center

(TI:CBRC)

University of Iowa

Law, Health, Policy, and Disability Center

431 Boyd Law Building

Iowa City, IA 52242

peter-blanck@uiowa.edu; james-schmeling@uiowa.edu

http://www.disability.law.uiowa.edu

Principal Investigator: Peter D. Blanck, PhD, JD 319/335-9043

Public Contact: James Schmeling, JD 319/335-8458; Fax: 319/335-9098 (Blanck); 319/335-9764

(Schmeling)

Project Number: H133A021801

Start Date: November 01, 2002

Length: 60 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 02 $299,965; FY 03 $299,945; FY 04 $299,951; FY 05 $299,985

Abstract: The CBRC builds and enhances the capacity of community-based and consumer-directed

disability organizations to design, implement, and disseminate research activities and projects that

promote environmental access and use of technology for independence. The CBRC uses a combination of implementation strategies such as leadership development, training, and technical assistance

activities, web-assisted audioconference training, distance education, and three annual onsite symposia

in Iowa City, Houston, and Washington, D.C. CBRC activities are directed to selected research teams,

research centers, community-based disability organizations, and University research centers. Using

multi- and inter-disciplinary models, the CBRC builds and enhances the capacity of these and other

entities to conduct research that is both scientifically rigorous and relevant to real-world social, policy,

and legal interests. The research team framework pairs researchers from community-based organizations with researchers from university-based research centers to improve existing and future collaborative relationships. The research pairs comprise individuals with diverse backgrounds, in terms of their

disability type and severity, ethnicity, and socioeconomic experiences. The participants form close

working relationships designed to advance knowledge in the areas related to technology for independence and environmental access. The project merges the national experience and expertise of ILRU

regarding independent living and principles of choice and self-determination, with the nationally

recognized research expertise of LHPDC in the areas of technology access and use, employment

policy, and civil rights.
3-30 NIDRR Program Directory FY 2004 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Kansas

Mental Retardation and Technology Disability and Rehabilitation

Research Project

University of Kansas

Beach Center on Disability

1200 Sunnyside Avenue, Room 3136

Lawrence, KS 66045-7534

wehmeyer@ku.edu

http://www.beachcenter.org

Principal Investigator: Michael Wehmeyer, PhD

Public Contact: 785/864-0723; Fax: 785/864-3458

Project Number: H133A010602

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $299,871; FY 02 $299,778; FY 03 $299,715

Abstract: This project supports the ability of people with intellectual disabilities (mental retardation)

and other cognitive disabilities to use electronic and information technology as well as assistive technology and technologies that involve universal design. It examines current technology design features,

gaps that exist in utilization of technologies, what state-of-the-art technology exists or is emerging that

would provide benefits, and what modifications to existing or new technology would enhance this

population’s inclusion in the community and integration into the workplace. The project includes two

national consensus conferences, in conjunction with national conferences held annually or by American Association on Mental Retardation (AAMR) and The Arc of the United States, to address issues

of technology use. Additional activities include reviewing and synthesizing the extant literature,

canvassing existing disability-related technology advocates and associations, and product development

and refinement. The project has also established a Special Interest Group on Technology and Mental

Retardation through the AAMR, which allows stakeholders in the field the opportunity to participate in

all project activities. A national expert advisory panel consisting of representatives from national

disability organizations, manufacturers, people with mental retardation, experts in the field, and parent/

family representatives are involved in all consensus-building activities and advise the project through

its duration. The project is a collaboration of the Beach Center on Disability at the University of

Kansas, The Arc, the AAMR, AbleLink Technologies, the Coleman Institute on Cognitive Disabilities, the Self-Advocate Coalition of Kansas, and the Joseph P. Kennedy Jr. Foundation.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-31

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Missouri

Assistive Technology in the Community

Washington University

School of Medicine

Occupational Therapy

4444 Forest Park Avenue

St. Louis, MO 63108

walkerc@msnotes.wustl.edu

http://enablemob.wustl.edu/Research/NIDRR/at_community.htm

Principal Investigator: David B. Gray, PhD 314/286-1658

Public Contact: Carla Walker 314/725-6676, ext.101; Fax: 314/721-9964

Project Number: H133A010701

Start Date: January 01, 2002

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $300,000; FY 02 $300,000; FY 03 $300,000

Abstract: This project promotes AT as a means of increasing participation in major life activities by

people with disabilities. Project activities include: (1) assessing the use, disuse, injury, and effects that

AT has on the participation of people with disabilities in major life activities, to determine what technologies are of the most benefit in community settings; (2) implementing a community-based AT

program in collaboration with Paraquad, a nationally recognized Center for Independent Living, to

improve the satisfaction of participants in their self-chosen life activities; (3) educating consumers,

independent living staff, educators, health care professionals, AT industry leaders, and public policymakers about the influence AT has on major life activities.
3-32 NIDRR Program Directory FY 2004 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

North Carolina

Advancing Assistive Technology Outcomes

Duke University

Division of Speech Pathology and Audiology

DUMC-3888

Durham, NC 27710

frank.deruyter@duke.edu

http://www.AToutcomes.com

Principal Investigator: Frank DeRuyter, PhD

Public Contact: Mitzi May 919/681-9983 (V); 919/684-6626 (TTY); Fax: 919/681-9984

Project Number: H133A010401

Start Date: November 01, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $449,787; FY 02 $449,932; FY 03 $449,967; FY 04 $449,994

Abstract: This program advances the field of AT outcomes measurement. Research activities include:

(1) performing a critical analysis of existing approaches to measurement and further developing instruments that are promising; (2) identifying unmet needs and assessing barriers to AT outcomes measurement; and (3) undertaking a prospective longitudinal study of factors associated with assistive device

adoption, use, and discontinuance. Development activities include: (1) developing and evaluating

independent electronic data collection or computer-assisted systems for the capture, analysis, and

interpretation of AT outcomes information; (2) developing and evaluating improved methods and

systems for communication of outcomes information among significant stakeholders; (3) automatic log

file performance data-capturing for AT outcomes assessment; and (4) development of new or improved

AT outcomes tools.ÿ:
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-33

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Ohio

Assistive Technology and Cognitive Disabilities

University of Akron

School of Speech-Language Pathology and Audiology

The Polsky Building 188K

Akron, OH 44325-3001

Principal Investigator: Roberta DePompei 330/972-6114

Public Contact: Fax: 330/972-3001

Project Number: H133A030810

Start Date: November 01, 2003

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $375,132; FY 04 $299,349; FY 05 $299,947

Abstract: This project assesses the use of several types of information technologies by children and

adults with cognitive disabilities, specifically individuals with TBI and mental retardation. Outcomes

include: (1) a catalog of existing portable devices for memory and organization (2) a list of features that

enhance or inhibit use of these general purpose and special-use technologies, (3) results of needs

surveys regarding use of these technologies, (4) white papers describing project findings, (5) tip cards

to assist families in purchasing devices, (6) stronger partnerships between the consumer and research

and development communities, and (7) recommendations for memory and organization device modifications and features for individuals with brain injury and mental retardation. The Brain Injury Association, Inc. leads and administers this collaborative partnership, which includes the Traumatic Brain

Injury Model Systems Projects at Moss Rehabilitation Research Institute and Spaulding Rehabilitation

Hospital, the Institute on Disabilities/Center for Excellence on Developmental Disabilities at Temple

University, and the University of Akron.
3-34 NIDRR Program Directory FY 2004 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Oregon

Think and Link: Email for Individuals with Cognitive Disabilities

Western Oregon University

Teaching Research Division

99 West Tenth Avenue, Suite 370

Eugene, OR 97401

mckay@oregon.uoregon.edu

http://www.think-and-link.org

Principal Investigator: McKay Moore Sohlberg, PhD

Public Contact: 541/346-2586; Fax: 541/346-0599

Project Number: H133A010610

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 01 $300,000; FY 02 $300,000; FY 03 $300,000

Abstract: This project improves the access and use of electronic mail by individuals with cognitive

disabilities resulting from brain injury. The Internet’s email component has created an unparalleled

communication network linking people for commercial and social purposes. It holds tremendous

potential for lessening social isolation, one of the most pervasive and devastating consequences of

brain injury. However, virtually nothing is known about what modifications are required to provide

successful access to this technology to people with cognitive disabilities that result from brain injury. In

addition, the diverse cognitive impairments confronting people with brain injury render an enormous

challenge to the development of assistive devices that could improve accessibility to email. Activities

of this project include: (1) identifying the wide range of issues critical for long-term, effective use of

email by people with cognitive disabilities; (2) developing a diagnostic protocol, a cyber-evaluation of

the potential of a person with cognitive disabilities to use electronic communication; (3) developing a

software toolkit that allows caregivers, support persons, and professionals to fit an individual user with

a customized email system; (4) creating a virtual clinic that supports widespread dissemination and use

of these materials by cognitive rehabilitation professionals. An open-source software site on the web

allows other worldwide researchers to use the new tools and contribute tools of their own.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-35

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Pennsylvania

Information Technology for Independence: Community-Based

Research

University of Pittsburgh

6026 Forbes Tower

Pittsburgh, PA 15260

parmanto@pitt.edu

http://www.pitt.edu/~curbcut

Principal Investigator: Bambang Parmanto, PhD

Public Contact: 412/383-6649; Fax: 412/383-6655

Project Number: H133A021916

Start Date: January 01, 2003

Length: 60 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $299,945; FY 03 $299,534; FY 04 $299,534; FY 05 $299,384

Abstract: This project explores methods and technologies to mitigate barriers to computer and Internet

use encountered by people with visual impairments. These barriers include limited computer ownership and Internet availability, difficulty in obtaining and using accommodations for functional limitations (including cost issues), psychological barriers arising from inadequate coaching or mentoring, and

the limited accessibility of most websites to individuals with visual impairments. Accessibility can be

promoted through computer ownership, Internet availability, assistive technologies, and knowledgeably-staffed public computer stations, such as at independent living centers. Evaluation of these barriers and of identified accommodation strategies is the first research task of this project. Preceded by

focus groups and a widely-disseminated survey, the match of correct assistive device(s) to the individual and appropriate coaching and mentoring will be tested at community-based computer laboratories. The second research task is to develop and evaluate a new approach to Internet accessibility—a

Gateway server. This Gateway transforms the contents of any website, whatever its level of accessibility, into the most accessible format for each Internet user, as Google does for personal digital assistant

(PDA) users. The Gateway promotes Internet accessibility without requiring that commercial Web sites

follow promulgated guidelines or standards for users with disabilities, something that Web developers

often seem to resist. Additionally, this project develops innovative metrics that enable the most rigorous

approach to the analysis of Internet accessibility and is conducting large-scale studies of different

topical categories of websites to measure progress in accessibility over time and identify the impact (s)

of new technologies.
3-36 NIDRR Program Directory FY 2004 - Technology for Access and Function

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Washington

ACCESS: Assisted Cognition in Community, Employment, and

Support Settings

University of Washington

Center on Human Development and Disability

Box 357920

Seattle, WA 98195

pabrown@u.washington.edu

http://cognitivetech.washington.edu

Principal Investigator: Kurt Johnson, PhD 206/543-3677

Public Contact: Pat Brown, Ed.D 206/616-3714; Fax: 206/543-4779

Project Number: H133A031739

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $297,127; FY 04 $299,171; FY 05 $298,764

Abstract: Project ACCESS investigates the use of assisted cognition as a tool for caregivers in supporting individuals with disabilities in living, working, and fully participating in community activities.

The use of assisted cognition devices has the potential to increase an individual’s independence and

decrease their reliance on the family/friend/caregiver network and community support staff. Devices in

development include the activity compass and the ADL Prompter. The activity compass meshes

several technologies (Palm Pilot, GPS receiver, and wireless modem). Over time, the device learns a

user’s typical daily routines, monitors for variations, and then decides whether a prompt is necessary

when a routine is unexpectedly changed. The ADL prompter monitors data collected by sensors

embedded in a living or work environment. Using artificial intelligence software, the data from these

sensors are interpreted and decisions made based upon the needs of the user. Although initially designed for people with Alzheimer’s, these devices have applications as support tools for caregivers and

people with disabilities since they potentially support “distributed caregiving” wherein the caregiver or

family member monitors, prompts, and/or supports from a distance.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-37

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Wisconsin

ATOMS Project: Assistive Technology Outcomes Measurement System

University of Wisconsin/Milwaukee

Rehabilitation Research Design and Disability Center

College of Health Sciences

P.O. Box 413

Milwaukee, WI 53201-0413

atoms@uwm.edu

http://www.atoms.uwm.edu

Principal Investigator: Roger O. Smith, PhD

Public Contact: 414/229-6803 (V); 414/229-5628 (TTY); Fax: 414/229-6843

Project Number: H133A010403

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 01 $450,000; FY 02 $450,000; FY 03 $450,000

Abstract: The ATOMS Project (Assistive Technology Outcomes Measurement System) targets the

definition and pre-development phases of a next-generation AT outcomes measurement system. A

comprehensive needs assessment, prototype instrument development, and consensus building activities

frame an integrated set of research and development activities to address urgent needs to identify

components of a future AT outcomes measurement system. In addition, these activities generate information about the relationships of AT outcomes factors that produce a better understanding of AT use

and abandonment.
3-38 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Sound Localization with Multichannel Compression Hearing Aids

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

helen@ski.org

http://www.ski.org

Principal Investigator: Helen J. Simon, PhD

Public Contact: 415/345-2071; Fax: 415/345-8455

Project Number: H133G030118

Start Date: September 01, 2003

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: The primary objective of this research is to evaluate and compare wide dynamic range

multichannel compression (WDRMCC) and linear hearing aids on localization (and speech perception

through the VA component) since there have been no studies of auditory localization using

WDRMCC. The research uses innovative strategies and an extension of previous work, by taking

WDRMCC outside of the laboratory to evaluate it in the complexities of the normal auditory environment and looking at effects of hearing aid experience on the ability to localize sounds. In addition to

examining the general efficacy of a new wearable WDRMCC hearing aid in localization tasks, the

research objectives include detailed study of the specific changes that occur in sound localization with

WDRMCC and linear amplification as a function of time and the differences between the two platforms.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-39

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

“Cross Watch”: Development of an Intersection Information System for

Blind Travelers Based on Computer Vision

The Smith-Kettlewell Eye Research Institute

2318 Fillmore Street

San Francisco, CA 94115

http://www.ski.org/Rehab

Principal Investigator: John A. Brabyn, PhD 415/345-2110

Public Contact: Deborah Gilden, PhD 415/345-2000; Fax: 415/345-8455

Project Number: H133G030080

Start Date: September 15, 2003

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: The goal of this project is to develop and evaluate a system, based on computer vision

technology, to give a blind traveler more information about intersections than is obtainable through

conventional orientation and mobility techniques. Urban intersections (the most dangerous parts of a

blind person’s travel, and the places where most accidents happen) are becoming increasingly complex, making safe crossing ever more difficult. The project develops a system named “Cross Watch” to

help the blind person find the crosswalk, learn about the shape and nature of the intersection, find the

pedestrian signal button, determine when the “walk” light is on, and alert him/her to any veering out of

the crosswalk while crossing. The primary input to the system is images from a small camera carried

like a pendant around the user’s neck, analyzed by software to extract the desired information. The

specific goals are to: (1) gather a database of real images taken by blind persons at a variety of different

kinds of intersections; (2) develop algorithms to process the images and extract the desired information;

(3) incorporate the camera and algorithms in a portable prototype; and (4) conduct user testing to

establish design parameters and human interface optimization. The software is designed to be capable

of integration as a module for the “SignFinder” system already in development for finding printed

signs in the camera images and reading them aloud to the user. The combined system provides a

quantum leap forward in independent travel for blind persons.
3-40 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Efficacy of a Custom-fitting Cognitive Orthotic with Automatic

Planning and Cueing Assistance

Santa Clara Valley Medical Center

751 South Bascom Avenue

San Jose, CA 95128

jerry.wright@hhs.co.scl.ca.us

http://www.tbi-sci.org

Principal Investigator: Jeffery Englander, MD; Tamara Bushnik, PhD 408/885-2000 (Englander);

408/793-6446 (Bushnik)

Public Contact: Jerry Wright 408/793-6433; Fax: 408/793-6434

Project Number: H133G040145

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 04 $149,994; FY 05 $149,963

Abstract: Executive control dysfunction can be the biggest challenge on the recovery path toward

social and vocational independence for individuals with cognitive impairment. This project demonstrates the effectiveness of a cognitive aid, the Planning and Execution Assistant and Trainer (PEAT).

PEAT not only provides the cueing and organization functions that many current cognitive orthoses

contain, but it possesses the algorithms to monitor the progress of task execution. PEAT automatically

generates schedules, detects and corrects schedule errors, cues the user to start and stop tasks, monitors

performance, and adjusts to changes as they arise. As such, PEAT is a cognitive orthotic that has great

potential for improving outcomes across multiple functional domains for people with cognitive impairments. Individuals with executive dysfunction 2° to traumatic or acquired brain injury, as well as other

disease processes receive either the PEAT device or standard cognitive aids/strategies. Each subject

undergoes three assessments: baseline (before study initiation), 3 and 6 months after study enrollment.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-41

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Colorado

Development of an Assistive Technology Outcomes Measurement

System Utilizing the International Classification of Functioning

(ICIDH-2/ICF)

University of Colorado Health Sciences Center

Assistive Technology Partners

1245 East Colfax Avenue, Suite 200

Denver, CO 80218

cathy.bodine@uchsc.edu

http://www.uchsc.edu/atp

Principal Investigator: Cathy Bodine

Public Contact: 303/315-1281; Fax: 303/837-1208

Project Number: H133G030187

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $149,939; FY 04 $149,933; FY 05 $149,996

Abstract: This project furthers the development of a secure, Health Insurance Privacy and Accountability Act of 1996 (HIPAA) compliant, multi-site, web-based assistive technology (AT) outcomes

system designed to capture data that enables the measurement of the impact of AT devices and services

for children and adults with disabilities. The project results in the design and development of a working

prototype complete with instructional support for users. The project is designed for easy addition of

data fields to support the ever-evolving schema for outcomes assessment in AT. The use of the International Classification of Functioning, Disability and Health (ICIDH-2/ICF) as the framework for development builds on initial pilot work already completed by faculty of Assistive Technology Partners,

University of Colorado Health Sciences Center, and collaboration with two NIDRR funded national

projects focused on AT outcomes development (ATOMS/CATOR). Information gained leads to

maximizing the full inclusion and integration into society, employment, independent living, family

support, and economic and social self-sufficiency of individuals with disabilities, especially individuals

with the most severe disabilities; and will lead to improved information and research on the effectiveness of AT devices and evidence-based practices.
3-42 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Delaware

Automatic Generation of Optimal Tactile Graphics

University of Delaware

Electrical and Computer Engineering Department

312 Evans Hall

Newark, DE 19716

barner@ee.udel.edu

http://www.ece.udel.edu/~barner

Principal Investigator: Kenneth Barner, PhD 302/831-6937

Public Contact: Fax: 302/831-4316

Project Number: H133G020103

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $149,700; FY 03 $149,770; FY 04 $149,539

Abstract: This project develops and implements image manipulation algorithms optimal for generating

binary tactile graphics. Specifically, the following methods are optimized for the automatic translation

of images to binary representations appropriate for tactile display: (1) Edge Detection—boundaries in

images often represent important context queues; extracting edges allows these queues to be tactilely

represented. This can be accomplished in a multi-resolution approach allowing the user to control the

detail level presented. (2) Region Segmentation—graphic content can often be separated into distinct

regions, or objects. While edge detection operations frequently yield broken boundaries, resulting in

confusing tactile representations; segmentation can produce closed boundaries optimized to retain

object integrity that can be combined with texturing procedures. (3) Tactile Texturing—binary texturing can be introduced to yield tactile information on the image gray level or color; such texturing, or

halftoning, methods can be adopted from the literature on visual halftones and optimized specifically

for tactile representations. The efficacy of each method is tested utilizing human subjects and the

results are utilized in the optimization of each algorithm. Software conversion routines and printing

algorithms are also developed that allow the methods to be used with existing software packages, such

as word processors and web browsers, and to enable direct printing on existing hardware, such as the

TIGER printer and microcapsule paper.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-43

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Delaware

Enhancing AAC Communication through Improved Access to Fringe

Vocabulary Words

University of Delaware

Computer and Information Sciences Department

103 Smith Hall

Newark, DE 19716

mccoy@cis.udel.edu

Principal Investigator: Kathleen F. McCoy, PhD

Public Contact: 302/831-1956; Fax: 302/831-4091

Project Number: H133G040051

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $149,993; FY 05 $149,996

Abstract: This project examines “fringe vocabulary” access, the means by which an Augmentative

and Alternative Communication (AAC) device user accesses the substantially larger set of words

needed in communication. AAC devices typically employ some mechanisms to enhance access to the

most frequently used words or “core vocabulary.” However, much communication also involves

accessing words that are not in this core. One method of accessing fringe vocabulary is word prediction, which can offer a choice of completed words based on the user’s selection of one or more initial

word letters. This project seeks to optimize word prediction for fringe vocabulary. An important factor

in this effort is the implementation of context-aware word prediction. Such a system automatically

adapts its word predictions in response to changes in the user’s actions and environment. For example,

different fringe vocabulary items may be predicted depending on the user’s geographic location,

conversational topic, and identity of his/her conversational partner. Researchers study and implement

word prediction methods based on observations of patterns of behavior exhibited by users in similar

situations.
3-44 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Florida

The Development of a Tool to Enhance Communications Between Blind

and Sighted Mathematicians, Students, and Teachers: A Global

Translation Appliance

University of South Florida

Lakeland Campus

3433 Winter Lake Road

Lakeland, FL 33803

arthur@lklnd.usf.edu

http://karshmer.lklnd.usf.edu/~igroupuma/

Principal Investigator: Arthur I. Karshmer, PhD

Public Contact: 863/667-7067; Fax: 863/667-7096

Project Number: H133G010046

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $149,540; FY 02 $134,111; FY 03 $139,474; FY 04 $0 (No-cost extension

through 9/30/2005)

Abstract: This project builds a translator for several mark-up notations used in scientific, mathematic,

engineering, and technological fields. The primary difficulty encountered by students with visual

impairments in pursuing studies in science, mathematics, engineering or technology is how to read and

write mathematics. To overcome the limited expressiveness of six-dot braille characters, a plethora of

notations for marking-up mathematics have been devised, including Nemeth Math code, Marburg

code, the French standard, the Stuttgart standard, and others. These notations are braille-based and

designed specifically for people with visual impairments, and are not known to sighted individuals; as

a result, written technical communication between individuals who are sighted and individuals who

have visual impairments is quite difficult. Further, communication between individuals who have

visual impairments is also difficult when different notations are used. The new tool allows free conversion among the Marburg code, Nemeth code, Latex and MathML by developing a common intermediate format (CIF) for representing mathematics, and uses logic programming and denotational semantics

to translate between supported notations and the CIF. The CIF is also used to develop a mark-up

notation independent auditory browser for the understanding of complex mathematical expressions by

users with visual impairments. The auditory browser conveys the structure of a mathematical expression as well as its content via speech output. The user also has the ability to navigate the expression

interactively and focus on its subparts in order to understand the expression better.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-45

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Georgia

Analyzing Universal Design Resource Needs for Practitioners in

Industry and Government

Georgia Institute of Technology

Industrial and Systems Engineering

755 Ferst Drive

Atlanta, GA 30332-0205

jacko@isye.gatech.edu

Principal Investigator: Julie A. Jacko, PhD

Public Contact: 404/894-2342; Fax: 404/894-2301

Project Number: H133G040151

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 04 $149,391; FY 05 $149,754

Abstract: This project draws from past human factors research which has examined the quality of

design guidelines, the design process in general, and needs/task analyses to support design-tool creation. Lessons from the human factors field are considered in relation to studies of universal design

practice in industry, and needs analysis to support universal design resource creation. The target

population for this project is people who utilize universal design resources in industry and government.

The objective of the research is to understand and document actions/behaviors practitioners involved in

design or procurement activities in relation to their use of universal design resources. A systems analysis approach has been employed in the design of research activities. The relevant elements of the

system are examined through observation and measurement. Four sequential research activities are: (1)

an analysis of universal design guidance in the context of practitioner use employing heuristic evaluation, survey and interview methods; (2) a field-based analysis of supply-chain stakeholder activities,

which conducts a needs and task analysis using various contextual inquiry methods; (3) controlled

laboratory-based usability studies of resource use during universal design projects; and (4) a summative

resources and training effects study, which examines how professionals who are new to universal

design concepts approach design, and succeed or fail depending on the level of tuition and the level of

resource access that they have during design activities.
3-46 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Tools to Help Web Developers Create More Universally Accessible Web

Resources to People with Disabilities

University of Illinois

Rehabilitation Education Center

1207 South Oak Street

Champaign, IL 61820

office@rehab.uiuc.edu

http://cita.rehab.uiuc.edu/software/office

Principal Investigator: Jon Gunderson, PhD

Public Contact: 217/244-5870; Fax: 217/333-0248

Project Number: H133G030079

Start Date: August 15, 2003

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 03 $149,959; FY 04 $149,957; FY 05 $149,993

Abstract: The most popular tools used by instructors are non-traditional web authoring tools like

Microsoft Office Applications including Power Point, Excel and Word (a recent survey of instructors

found 99% use Microsoft Office to create at least part of their web based instructional materials). This

project creates web authoring tools that integrate the creation of accessible markup into the default

authoring process of publishing Microsoft Office documents to the web. The accessibility is integrated

into the authoring process so the author does not need any special knowledge of HTML coding or

accessibility techniques, nor to perform extra time consuming steps to add or edit accessible markup

after a document is created. The integrated authoring tool does not require awkward post publishing

accessibility evaluation and repair steps to determine what accessibility markup is needed for improved

accessibility. The HTML generated by the Office plug-ins not only improves accessibility to people

with disabilities, but the content is more accessible to everyone by supporting World Wide Web Consortium (W3C) web standards and the interoperability the W3C recommendations provide. The

interoperability of W3C recommendations makes information available to any web browser and not

just Internet Explorer (currently the default web publishing features of Office support web coding that

can only be viewed in Internet Explorer).
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-47

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Cost Effectiveness of a Computerized Oral Reading Treatment for

Aphasia

Rehabilitation Institute Research Corporation

345 East Superior Street

Chicago, IL 60611-4496

lcherney@ric.org

Principal Investigator: Leora Cherney, PhD

Public Contact: 312/238-1117; Fax: 312/238-2635

Project Number: H133G010098

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 01 $149,470; FY 02 $149,892; FY 03 $149,732; FY 04 $0 (No-cost extension

through 9/30/2005)

Abstract: This study evaluates the efficacy and cost-effectiveness of an innovative, computerized

treatment program for individuals with aphasia, a communication disorder and chronic condition.

Aphasia requires long-term treatment to ensure that individuals can participate in a full range of vocational, recreational, and social activities. However, recent health care changes have seriously curtailed

the amount of treatment received by patients with aphasia. In this environment effective treatments

should be developed that can be easily administered and delivered at minimum cost. Oral Reading for

Language in Aphasia (ORLA) was originally developed to improve reading comprehension in individuals with aphasia. Preliminary studies indicate that ORLA is effective in improving reading comprehension in patients with all types of aphasia. In addition to improvements in reading comprehension,

cross-modal generalization occurs in some patients, with improvements in auditory comprehension and

oral expression evident. The present study compares changes in communication performance for a

group of aphasic individuals receiving ORLA from a speech-language pathologist and a group receiving a computerized version of the ORLA treatment.
3-48 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Selective Dynamic Strength Training to Enhance Upper Limb

Coordination Following Stroke

Northwestern University

Department of Physical Therapy and Human Movement Sciences

645 North Michigan Avenue, Suite 1100

Chicago, IL 60611

j-dewald@northwestern.edu

http://www.smpp.northwestern.edu/neuroimaging/NMC_Dewald.html

Principal Investigator: Julius Dewald, PT, PhD

Public Contact: 312/908-6788; Fax: 312/908-0741

Project Number: H133G030143

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $149,998; FY 04 $149,991; FY 05 $149,992

Abstract: This study investigates the use of a novel selective dynamic strengthening protocol, which

incorporates a two-joint robotic device to overcome gravity induced abnormal movement synergies

following hemiparetic stroke. The specific objectives are the evaluation and demonstration of the

usefulness and effectiveness of this selective dynamic robot-supported training regime for enhancement

of quality of life of stroke survivors. The effects of the dynamic training regime on functional arm

movements are being investigated in two groups of 20 subjects with chronic hemiparetic stroke. The

control group follows an 8-week conventional upper extremity strengthening protocol consisting of

shoulder abduction/flexion and elbow extension exercises. This conventional protocol represents an

adapted exercise program is available for people with chronic stroke (4.5 million) whom no longer

receive formal physical therapy due to a plateau in functional restoration. The experimental group

follows a novel robot-supported training regime, which also strengthens subjects with chronic stroke

but emphasizes performance of rapid reaching movements while increasing active support of their arm.

This enables the subject to progressively deviate from their abnormal torque synergies. The evaluation

and training paradigm provides quantitative outcome measures, which can be used to reliably track a

patient’s progress using technology that is easy to implement with no risk of injury. The long-term

goals of this study are the technological development and implementation of a simple, user-friendly

robot-supported therapeutic intervention accessible to consumers in both in- and out-patient clinics.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-49

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Computer Treatment for Aphasia: Evaluating Efficacy and Treatment

Intensity

Rehabilitation Institute Research Corporation

345 East Superior Street, Room 1353A

Chicago, IL 60611

lcherney@ric.org

Principal Investigator: Leora R. Cherney, PhD

Public Contact: 312/238-1117; Fax: 312/238-2208

Project Number: H133G040269

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $149,978; FY 05 $149,808

Abstract: This project implements an innovative computerized treatment program for individuals with

chronic aphasia, evaluates its effectiveness, and assesses the impact of treatment intensity on outcome.

The treatment, Oral Reading for Language in Aphasia (ORLA), uses state-of-the-art computer technology that allows the individual with aphasia to read aloud, and ultimately speak, sentences at the same

time as the words are produced in visible speech by an animated agent. The treatment is based on a

theoretical framework that incorporates two lines of work: the neuropsychological models of reading

and observation-execution-matching. Individuals with chronic aphasia are randomized to one of three

treatment groups: high intensity computer treatment (10 hours per week); low intensity computer

treatment (4 hours per week); and a control condition in which subjects participate in non-language

computer activities for 4 hours per week. For all groups, treatment continues for six weeks. Language

and communication skills are evaluated pre-treatment, immediately post-treatment, and at 6 and 12

weeks after the end of treatment. The primary outcome measure is the Aphasia Quotient of the Western

Aphasia Battery. Secondary outcome measures consider the ICFDH-2 categories of body structure/

function, activity and participation and include a variety of standard aphasia tests as well as quality of

life indices. Aphasia is a chronic condition that requires long-term treatment of the communication

disorder to ensure that individuals can participate in a full range of vocational, recreational and social

activities.
3-50 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Iowa

Computer Training Materials for Deaf-Blind Individuals

State of Iowa Department for the Blind

524 Fourth Street

Des Moines, IA 50309

assist@blind.state.ia.us

http://www.blind.state.ia.us/assist/deafblind-tutorials.htm

Principal Investigator: Curtis Chong

Public Contact: 515/281-1361; Fax: 515/242-5781

Project Number: H133G020196

Start Date: August 01, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $148,870; FY 03 $147,870; FY 04 $147,800

Abstract: This project creates a comprehensive array of computer training materials tailored to the

needs of people who are deaf-blind. Objectives include: (1) developing 45 computer tutorials written

for people who are deaf-blind; (2) conducting three seminars to provide information and training to VR

professionals and others regarding computer access by people who are deaf-blind; and (3) disseminating training materials to agencies serving people who are deaf-blind. The tutorials use an innovative

approach that trains people who are deaf-blind or blind to use a computer with assistive technology.

This includes a keyboard-only approach to the graphical Windows interface and information and stepby-step exercises that specifically address the screen reader-braille display combination the individual

is using to operate mainstream or communications programs (each screen reader and braille display

uses unique keystrokes, configurations, and feedback). This project provides people who are deafblind with computer skills they need to obtain and retain good jobs and to pursue computer-based

communications and recreational activities. It also provides VR professionals, consumer organizations,

and other private and public agencies with professionally developed tutorials they can give to clients

for independent work or use in one-on-one or group computer training.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-51

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Kansas

Reusing AT/DME Acquired Through Public Funds: Developing a CostNeutral, Consumer-Driven Program

University of Kansas Center for Research, Inc.

Schiefelbusch Institute for Life Span Studies

1000 Sunnyside Avenue; 1052 Dole

Lawrence, KS 66045-7555

ssack@ku.edu

http://www.atk.ku.edu

Principal Investigator: Sara H. Sack, PhD 620/421-8367

Public Contact: Pamela Cress, EdD 620/421-6550, ext. 1888; Fax: 620/421-0954

Project Number: H133G010102

Start Date: September 01, 2001

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $149,740; FY 02 $149,991; FY 03 $149,998; FY 04 $0 (No-cost extension

through 8/31/2005)

Abstract: This project builds a consumer responsive, cost-neutral program to reuse and redistribute

durable medical equipment. The project addresses state and national needs in three critical ways. First,

it increases access to durable medical equipment and AT (including previously used technology) that

promotes the likelihood that people are able to reach personal goals related to independent living,

employment, and improved social lives. Second, using previously owned equipment in good condition

spreads the benefit of limited state and federal resources across more people. And finally, the reuse

program reduces the consumption of natural resources such as aluminum, glass, plastics, and fuel. The

reuse program is composed of four interrelated components, including a data tracking system, a consumer follow-up system, a reuse system through a network of statewide equipment providers, and

marketing. This project is a collaboration of the Technology Act grantee for Kansas, the Assistive

Technology for Kansans project (ATK), Kansas Medical Policy (Medicaid), durable medical equipment providers, and consumers.
3-52 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Access to Digital Television

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

Mary_Watkins@wgbh.org

http://ncam.wgbh.org

Principal Investigator: Gerry Field

Public Contact: Mary Watkins 617/300-3700; Fax: 617/300-1035

Project Number: H133G010170

Start Date: August 01, 2001

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000

Abstract: In the transition of the nation’s television system from analog to digital television (DTV)

broadcasts, this “DTV Access” project represents the needs of people with sensory disabilities. Serious

technical challenges may prevent Americans from participating in the pending transformation of

communications and program delivery technologies if they are deaf, hard-of-hearing, blind or if they

have low vision. This project leads the effort to ensure that the next-generation of DTV equipment

does not replicate current problems or create new ones in the need to comply with the Federal Communications Commission-mandated digital transition. Project staff are working with broadcasters and

standards-setting bodies to develop standards and open protocols, and to support implementation of

captions and descriptions in DTV broadcasts. The DTV Access project addresses additional challenges that arise when broadcast programming is delivered via cable, satellite, Internet or wireless

technologies. It also works to include people with sensory disabilities in the audience for the wealth of

new program enhancements, interactive capabilities, and public and private data services that DTV

promises to deliver. The project unites industry, standards-setting bodies, regulatory agencies, and

consumers who have disabilities in a national, high-profile collaboration to provide equal access for

people with disabilities to DTV programming, enhancements, interactive components, and data services.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-53

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Beyond the Text: Access to Images, Audio, and Multimedia in eBooks

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

access@wgbh.org

http://ncam.wgbh.org/ebook

Principal Investigator: Geoff Freed 617/300-4223

Public Contact: Mary Watkins 617/300-3400; Fax: 617/300-1035

Project Number: H133G020091

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000

Abstract: This project researches, develops, and disseminates recommended practices and demonstration models that enable access to and understanding of images, audio, and multimedia presented within

electronic book (eBook) formats for users who are blind or deaf. The eBook format offers online and

portable access to all manner of traditional print products, including fiction, nonfiction, textbooks,

professional journals, and other content, via personal computer, laptop, library systems, dedicated

devices, and personal digital assistants (PDAs). Educators, trainers, and publishers are beginning to

explore the learning potential of interactive web-based textbooks that include multimedia (audio and

video) and study tools such as highlighting, note-taking, bookmarking, and direct Internet connections

to references and other online learning resources. All of these features in the eBook format hold great

promise to enhance and improve access to information for users with disabilities. Accessible eBooks

could offer learners of all ages who are blind or deaf equal and ready access to trade, text, or scholarly

books, training materials, online research libraries, and all manner of electronically published

resourceshn:—a major leap forward in leveling the playing field for people with disabilities at home, at

work, and at school. In order to accomplish this, eBook standards and systems must be designed to

facilitate accessible navigation as well as caption and audio description displays, and eBook materials

must be properly formatted for screen readers and/or refreshable braille displays. eBook content must

include ancillary audio and text information to enable navigation, and to make images, audio, and

multimedia accessible.
3-54 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Access to Digital Cinema Systems

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

Principal Investigator: Bradley C. Botkin 617/300-3902

Public Contact: Mary Watkins 617/300-3700; Fax: 617/300-1020

Project Number: H133G030104

Start Date: September 01, 2003

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: This project builds on WGHB National Center for Accessible Media (NCAM’s) experience

and successes in developing and proliferating MoPix technologies to make digital cinema accessible to

people with sensory disabilities. MoPix systems enable the 34 million Americans with hearing or

vision loss to enjoy first-run films with their friends and families. As in all NCAM standards initiatives,

open specifications are proposed that technology developers can use to enable myriad display options,

including, but not limited to, MoPix systems. Project goals are to: (1) Work with standards organizations to ensure inclusion of captions and audio narration in industry specifications for packaging,

identification, transport, retrieval and display of digital cinema content; (2) develop solutions and

prototypes to support delivery and display of caption and description files, both in current first-generation and future d-cinema systems; and (3) promote review of project solutions and proposed standards

through dissemination and high-profile demonstrations, and support implementation by digital cinema

systems vendors.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-55

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Speech Solutions for Next Generation Media Centers

WGBH Educational Foundation

National Center for Accessible Media

125 Western Avenue

Boston, MA 02134

Mary_Watkins@wgbh.org

http://ncam.wgbh.org

Principal Investigator: Gerry Field 617/300-3496

Public Contact: Mary Watkins 617/300-3700; Fax: 617/300-1035

Project Number: H133G040143

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: This project develops a fully operational home media center with voice output capabilities

enabled via keyboard and remote control, based on open source technologies. Project activities include: Creation of an accessible Linux-based home media center; publication of source code and

specifications for open source media center; speech interface solutions enabled via keyboard and

remote control; demonstration model of end user control and navigation of open source media platform

via a PDA with Panasonic’s small footprint speech interface; publication of end-user interface research;

and a final report that details the impact of project solutions and publications. A demonstration model

of a small footprint speech interface for this open source media center that previews how emerging

speech technologies could be used in new handheld products in development by industry is in development from Panasonic Speech Technology Laboratories. American Foundation for the Blind contributes expertise to the open source solution and conducts comprehensive end-user evaluations that

document how blind and low vision users interact with and utilize the speech interface offered by both

project solutions.
3-56 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Minnesota

Cued-Response to Stimulate Saccade-Step Planning and Mobility in

Progressive Supranuclear Palsy

University of Minnesota

Department of Physical Medicine and Rehabilitation

MMC 388, 420 Delaware Street SE

Minneapolis, MN 55455

difab001@umn.edu

Principal Investigator: Richard P. Di Fabio, PhD

Public Contact: 612/626-4973; Fax: 651/653-0909

Project Number: H133G030159

Start Date: September 01, 2003

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $150,000; FY 04 $149,999; FY 05 $150,000

Abstract: Vertical gaze palsy and recurrent falls are cardinal features of progressive supranuclear palsy

(PSP). These symptoms interfere with safe ambulation and functional mobility. The deficit in gaze

control has a known pathoanatomical origin, but may also involve cognitive dysfunction manifest by a

loss of executive cognitive abilities and visual attention. The purposes of this project are to: (1) determine whether a cued-response intervention is effective in promoting gaze saccade function during a

step climbing task, (2) determine if improved gaze control leads to a reduction of falls and improved

gait mobility, and (3) examine the neurocognitive mechanisms underlying any such improvements.

Preliminary research suggests that vertical gaze palsy can be improved by cueing patients with PSP to

initiate a new stepping pattern while the subject is under motion toward the object. The cue is presented in a stimulus-response compatibility paradigm, which requires the use of executive cognitive

function (planning and problem-solving) to select the appropriate limb for stepping. Two groups of

subjects with PSP will be randomly assigned to receive limb-cue plus eye movement training, or

walking practice with no training in a cross-over design. A follow-up will evaluate retention and

transfer of learning. Outcomes will be assessed using functional tests of mobility and a kinematic

analysis synchronized with infrared oculography.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-57

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New Jersey

Development of an Intelligent Patient Lift and Transfer Device

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

tedwards@kmrrec.org

http://www.kmrrec.org/rehabengineering

Principal Investigator: W. Thomas Edwards, PhD

Public Contact: 973/324-3539; Fax: 973/243-6984

Project Number: H133G040183

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: The objective of the project is to develop the Intelligent Patient Lift (IPL) and Transfer

Device based upon an advanced state-of-the-art technology that addresses present shortcomings:

complexity and safety, cost and availability, level of effort for caregivers, and the number of caregivers

needed to complete a transfer. This innovative system incorporates a recently patented concept proven

in other lifting applications and developed by project collaborator Yobotics Incorporated. Based on

needs identified at KMRREC-KIR, researchers develop and demonstrate refinements of the Patient

Lifting frame and sling. The goal is to introduce an intelligent interface that provides both natural and

comfortable interactions between the patient/user and the caregiver. The novel features incorporated in

the IPL introduce a more intuitive control of the system and improve the quality of user-caregiver

interactions by reducing the level of effort and complexity. The new IPL device is demonstrated and

evaluated in an active rehabilitation setting. This fundamental lifting technology can be extended to

other applications (such as vehicle entry and homecare) to benefit the majority of those with mobility

disabilities.
3-58 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Inclusive Indoor Play

State University of New York (SUNY)/Buffalo

377 Hayes Hall

Buffalo, NY 14214

amullick@ap.buffalo.edu

Principal Investigator: Abir Mullick

Public Contact: 716/829-3485, ext. 322; Fax: 716/829-3861

Project Number: H133G040259

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: The purpose of this project is research indoor play environments, develop universal design

play guidelines and design models of play environments that are safe and accessible to all children.

This project: (1) conducts basic research and develops universal design guidelines for indoor play; (2)

designs, develops, and tests models of inclusive indoor play environments that promote the highest

level of safety, usability, accessibility, and social interaction; and (3) constructs and tests a working

prototype of an indoor play environment that demonstrates highest level of access for all children. It

researches play and the play environment through literature review, existing products, existing play

environments, focus group interviews with participants, expert consultations, children’s play designs,

and testing of full-scale simulated play environments. The second year of this project focuses on

development of design concepts, construction of refined design in full scale, and testing with users.

The final year of this project is dedicated to prototype construction and testing.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-59

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Web-based Student Processes at Community Colleges – Tools for

Ensuring Accessibility

Cornell University

Employment and Disability Institute

School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853

smb23@cornell.edu

http://edi.cornell.edu

Principal Investigator: Susanne Bruyère, PhD

Public Contact: 607/255-9536 (V); 607/255-2891 (TTY); ; Fax: 607/255-2763

Project Number: H133G040255

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: Web-based processes (such as student recruitment, information dissemination, applications,

course registrations, and online coursework) have become increasingly important to the way postsecondary educational institutions communicate and interact with their potential and enrolled student

populations. This project targets Cornell’s information technology (IT) accessibility research and

development efforts specifically to the national community college network. A multiple-prong approach is used to examine the state of web accessibility in the community college network and identify

IT accessibility barriers for students with disabilities and ways to address them. The project includes a

review of selected online application processes in 30 community colleges. The focus of the Year Two

research is a telephone survey across all community colleges nationally regarding use of web-based/

online student recruitment, application, and registration processes and the colleges’ awareness of web

accessibility issues and policies regarding accessibility. The project is a collaborative effort between

EDI and Cornell University’s Institute for Community College Development (ICCD).
3-60 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Advanced Tissue Vascular and Biomechanical Studies for Improved

Prosthetic Socket Design

Narrows Institute for Biomedical Research

VA NYHHS

Rehabilitation Engineering Research (151)

423 East 23rd Street

New York, NY 10010

vlh3@nyu.edu

http://www.med.nyu.edu/rehabengineering

Principal Investigator: Vern L. Houston, PhD

Public Contact: 212/951-3339; Fax: 212/951-3342

Project Number: H133G030069

Start Date: January 01, 2004

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $149,993; FY 04 $149,932; FY 05 $149,936

Abstract: The objectives of this project are: (1) to establish the prevalence of prosthesis induced

macro-circulatory occlusion; and (2) to determine if the degree of occlusion produced (if any) is of

sufficient magnitude and duration to cause ischemia during walking and other physical activities, that

can lead to chronic tissue atrophy. Preliminary studies have shown that patellar tendon bearing (PTB)

prosthetic sockets can occlude transtibial amputees’ residual limb circulation. Specifically, the project

researches whether: (1) didactically taught and commonly clinically applied PTB sockets occlude

transtibial amputees’ popliteal arterial circulation, and (2) the circulatory occlusion so produced causes

ischemia in residual limb tissues during periods of moderate to strenuous exercise.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-61

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

North Carolina

ABC-Link: A Web-Based Literacy Assessment Tool for Students with

Significant Disabilities

University of North Carolina at Chapel Hill

Allied Health Sciences

CB# 7335, TR46

Chapel Hill, NC 27599-7335

Karen_Erickson@med.unc.edu

Principal Investigator: Karen Erickson, PhD

Public Contact: 919/966-8828; Fax: 919/843-3250

Project Number: H133G020133

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 02 $149,733; FY 03 $149,688; FY 04 $149,545

Abstract: This development project is designed to create a web-based assessment tool, ABC-Link,

that provides accessible reading assessment tasks via an innovative interface that simultaneously

supports students with severe speech and physical impairments (SSPI) and the adults who assess them.

Through its use of state-of-the-art technology, ABC-Link is an interactive site that: (1) guides the

assessment as it progresses based on a model of behavioral and test-administration efficiency, (2) feeds

the assessment results back to an expert team for interpretation, (3) guides the adult in conducting

further assessment as necessary, and (4) provides a suggested plan of intervention.
3-62 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Information Technology Access for Adults with Cognitive Disabilities:

Participatory Development of a Model for Software Accessibility,

Training, and Support

Eugene Research Institute

132 East Broadway, Suite 747

Eugene, OR 97401

tkeating@eugeneresearch.org

http://www.eugeneresearch.org

Principal Investigator: Thomas Keating, PhD

Public Contact: 541/342-3763; Fax: 541/342-4310

Project Number: H133G010162

Start Date: September 01, 2001

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 01 $149,996; FY 02 $149,994; FY 03 $149,738; FY 04 $0 (No-cost extension

through 12/31/2004)

Abstract: This project improves IT access for persons with significant cognitive disabilities through

participatory development of a model incorporating accessible life skills software, effective consumer

training, and innovative methods for ongoing technical support. Many persons with significant cognitive disabilities are excluded from the benefits of IT because software interfaces are too complex, the

content is not relevant to their life management requirements, and not enough is known about their

training and technical support needs. This project builds on previous efforts in development of life

skills software to produce a field-tested and expanded array of applications along with a replicable

model for training and technical support in home, community, and educational settings. Based on the

project’s participatory development approach, persons with cognitive disabilities are integrally involved in research, development, and dissemination activities.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-63

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Oregon Project Rehabilitation of Communication Skills in Dementia

Through AAC

Oregon Health and Science University

P.O. Box 574

Portland, OR 92707

friedm@ohsu.edu

Principal Investigator: Melanie Fried-Oken, PhD

Public Contact: 503/494-7587; Fax: 503/494-6868

Project Number: H133G040176

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: The project increases access to AT by revealing which communication related devices are

appropriate for persons with dementia. The goals of the research are to demonstrate that alternative and

augmentative communication (AAC) use is a promising avenue for improving the lives of adults with

dementia and of the families and caregivers who need to communicate with them. The study addresses

the input mode of level of symbol that optimizes AAC device use for persons with moderate dementia.

It compares the effectiveness of abstract symbols (printed words), two-dimensional symbols (colored

photos), and three-dimensional symbols (small objects) in AAC devices. The study also addresses the

effect of output mode on conversational skills of persons with moderate dementia. It compares the use

of electronic voice-output devices with non-electronic devices.
3-64 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Pennsylvania

The Efficacy of Computer and Sense Wear Technologies for Promoting

Health in Adults with Fibromyalgia: A Randomized Clinical Trial

University of Pittsburgh

5012 Forbes Tower

Pittsburgh, PA 15260

jcr@pitt.edu

Principal Investigator: Joan Rogers, PhD; Margo Holm, PhD

Public Contact: Joan Rogers 412/383-6621; Fax: 412/383-6613

Project Number: H133G020159

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 02 $149,996; FY 03 $149,966; FY 04 $149,996

Abstract: This study uses a cognitive-behavioral intervention to facilitate adoption of a wellness

lifestyle in people with fibromyalgia. Specifically, researchers test the efficacy of an Internet-based

health promotion computer program used in conjunction with a wearable sensor (SenseWearTM) for

developing a wellness lifestyle and improving the quality of life of adults with fibromyalgia. Consumers are assisted in: (1) establishing goals in the areas of physical activity, nutrition, participation in

meaningful, productive activities, sleep, stress-reducing activities, and emotional state; (2) monitoring

progress toward established goals; and (3) assessing the relationship between these areas in one ̃’s

daily life. In addition, based on consumer input, the program offers suggestions for developing a

wellness lifestyle. SenseWearTM provides objective data about activity level and stress level for

consumers to use in combination with the self-assessment data provided by the Internet program.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-65

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Tennessee

Factors Affecting Directional Hearing Aid Performance in Children

Vanderbilt University School of Medicine

Vanderbilt Bill Wilkerson Center for Otolaryngology and Communication Sciences

1114 - 19th Avenue South

Nashville, TN 37212

todd.a.ricketts@vanderbilt.edu

Principal Investigator: Todd A. Ricketts, PhD

Public Contact: 615/936-5258; Fax: 615/936-5013

Project Number: H133G020097

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $149,576; FY 03 $149,844; FY 04 $149,915

Abstract: This project investigates quantification of the angular position of children’s heads in classroom environments and measurements of speech understanding and classroom performance in environments that simulate the most common listening situations children experience. Directional hearing

aids represent one of the few technologies that have the potential to positively impact children’s speech

understanding in classroom environments without requiring hardware external to the child. These

instruments work by reducing amplification for sounds arriving from behind the child, relative to that

provided for sounds arriving from the front. Therefore the intensity level delivered to a child’s ear for

sound sources of interest will be greater than that of other sounds, if the assumption is made that the

child will face the sound source of interest. Unfortunately, the angle at which children position their

heads in classroom environments is unknown. In addition, the magnitude of improvement in speech

intelligibility and classroom performance afforded by directional hearing aids in comparison to their

traditional, omnidirectional counterparts in real classroom environments is unknown. Results to date

indicate that children as young as 4-6 are able to accurately orient their heads towards sound sources.

Better accuracy it generally associated with more difficult listening situations, but be detrimental in

others. The specific relationship between directional benefit and environment appears to be predictable

and is highly dependent on the location of the sound and noise sources.
3-66 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Utah

Bottom-Up Modeling Of Mass Pedestrian Flows: Implications for the

Effective Egress of Individuals with Disabilities

Utah State University

Center for Persons with Disabilities

6800 Old Main Hill

Logan, UT 84322

keithc@cpd2.usu.edu

Principal Investigator: Keith Christensen, MLA

Public Contact: 435/797-3997; Fax: 435/797-7219

Project Number: H133G030013

Start Date: November 01, 2003

Length: 36 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: The purpose of this research project is to improve the exit of individuals with disabilities

from buildings and other settings in emergencies. The project researches the effect of the current and

proposed Americans with Disabilities Act Accessibility Guidelines (ADAAG) for the built-environment on the egress of individuals with disabilities during the mass pedestrian flows (MPFs) triggered

by health-safety events, and the effect of security-oriented design methods on the egress of individuals

with disabilities during health-safety event triggered MPFs. The objective of the project is to measure

the emergent behaviors of the diverse sample populations of six representative built-environments (an

airport, high school, conference center, multi-story office building, federal development, and secured

federal development) during simulated health-safety events. An intervention (modification of the

design character of the built-environment) is applied to eliminate conditions occurring during MPFs,

which adversely affect the egress of individuals with disabilities.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-67

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Virginia

The Braille Power Reader Program

Science Applications International Corporation

4001 Fairfax Drive, Suite 450

Arlington, VA 22203

hintond@saic.com

Principal Investigator: Daniel E. Hinton

Public Contact: Elizabeth Deedee Rosenfeld, Systems Engineer 703/276-3192; Fax: 703/522-6006

Project Number: H133G010028

Start Date: August 01, 2001

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 01 $149,839; FY 02 $149,565; FY 03 $149,956

Abstract: This project develops hardware and software that provides people who are deaf-blind or

blind with access to much of the digital media and technology that is available to sighted people in

academic and employment environments. Development efforts include both newly designed hardware

and software and improvements on legacy products previously designed by Science Applications

International Corporation (SAIC) and Tactilics. These products integrate enhanced hardware and

software and provide 40-character electronic braille access to computers and all forms of IT. Development of the braille Reader system is initially focused on the needs of people who are deaf-blind because of the close relationship between SAIC and the Helen Keller National Center (HKNC), but the

display technology is also important to people who are only blind. The teaming arrangement of SAIC,

Tactilics, and HKNC assures that the needs of all people who may benefit from using the system—

blind and deaf-blind—are met.
3-68 NIDRR Program Directory FY 2004 - Technology for Access and Function

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

West Virginia

Project Safe EV-AC: Safe Evacuation and Accommodation of People

with Disabilities

West Virginia University

Job Accommodation Network (JAN)

224 Spruce Street

Morgantown, WV 26506

evac@icdi.wvu.edu

http://evac.icdi.wvu.edu

Principal Investigator: Richard Walls 304/293-7186

Public Contact: Beth Loy, Project Director 304/293-7186; Fax: 304/393-5407

Project Number: H133G040318

Start Date: September 01, 2004

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $149,970; FY 05 $149,949

Abstract: The Project Safe EV-AC (Safe EVacuation and ACcommodation of People with Disabilities) Team, which includes the Job Accommodation Network and the National Organization on

Disability’s Emergency Preparedness Initiative, develops high quality, comprehensive, easy-to-use safe

evacuation materials that include people with disabilities. The Project Safe EV-AC Team researches

prior safe evacuation studies and training products; coordinates a network of expert and end-user

Advisor Groups; and produces comprehensive, yet cost-effective, safe evacuation education and

training tools using the most appropriate technology for the material. Project Safe EV-AC targets

certain audiences, including people with disabilities and emergency responders. The Project uses a

continuous improvement model with enhanced feedback loops to ensure that the products created are

rigorously evaluated by those who use them. The end product includes a final report for NIDRR

articulating the existing gaps in knowledge and product development in the field of safe evacuation

and accommodation for people with disabilities.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-69

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Arizona

Development of a Lightweight Adjustable, Modular Pediatric

Wheelchair

Three Rivers Holdings, LLC

1826 West Broadway Road, Suite 43

Mesa, AZ 85202

david@3rivers.com

http://www.3rivers.com

Principal Investigator: Chris Willems 480/833-2541

Public Contact: David Boninger 480/833-1829; Fax: 480/833-1837

Project Number: H133S040028

Start Date: October 01, 2004

Length: 6 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 04 $74,921

Abstract: This project designs a low cost yet highly functional pediatric wheelchair. The pediatric

wheelchair accommodates the seating needs of children with disabilities, and provides a tilt-in-space

function. The purpose of this research is to create and test prototypes to identify issues that need to be

addressed to develop a practical commercial device. The prototype is to be tested to insure that (1) its

dimensions fit a wide variety of children with disabilities, (2) it meets of exceeds currently approved

ANSI/RESNA wheelchair and seating standards, and (3) it performs equivalently or, better than other

comparable pediatric wheelchairs on ANSI/RESNA tests. A consumer and clinician focus group

evaluates the prototype models and their feedback is incorporated into the design to be tested for

meeting ANSI/RESNA standards.
3-70 NIDRR Program Directory FY 2004 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

California

Speech Production Training Agent for Children with Language

Challenges

Animated Speech Corporation

314 27th Avenue

San Mateo, CA 94403

info@animatedspeech.com

http://www.animatedspeech.com

Principal Investigator: Scott Prevost

Public Contact: Walter Schwartz 650/533-6444

Project Number: H133S040105

Start Date: October 01, 2004

Length: 6 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $75,000

Abstract: This project validates the effectiveness of its 3D animated talking head software application

platform to assist teachers and speech pathologists in the treatment of speech disorders. The platform

consists of simple, user-friendly tools to create speech and language lessons which incorporate a lip

readable accurate talking head, dubbed “Baldi®.” Baldi’s skin can be made transparent to show how

speech is created by the tongue, jaw (palate, gums, and teeth), and lips. Views from any angle can be

supplemented with airflow and vibration indicators and highlighting. The project uses articulation

lessons with optimal view configurations for Baldi to demonstrate production of critical speech segments. Children with speech/language impairments, including deaf and hard of hearing children in

grades K-6 are trained with this system. The effectiveness is compared against direct instruction and

commercially available speech training software alternatives. The long-term goals are to expand and

commercialize the application to provide speech therapy to children with a broad spectrum of speech

disorders including phonology (speech-sound discrimination), fluency (the flow of speech) and motor

speech (movement of oral structures) and children with other contributing conditions such as autism.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-71

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Colorado

Development and Evaluation of an Accessible Voice Recognition System

(AVRS) for Individuals with Intellectual Disabilities

AbleLink Technologies, Inc.

528 North Tejon Street, Suite 100

Colorado Springs, CO 80903-1158

steve@assess.net

http://www.ablelinktech.com

Principal Investigator: Steven E. Stock

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S040085

Start Date: October 01, 2004

Length: 6 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 04 $75,000

Abstract: This project proposes research, development and feasibility evaluation of an Accessible

Voice Recognition System (AVRS) to enable students and adults with significant cognitive impairments to more independently control and navigate through computer operating systems and to create a

variety of personal text documents. Individuals with significant cognitive impairments are among those

with the highest incidence of illiteracy. This, combined with the complex and text based interfaces of

mainstream computer programs and operating systems, makes typical keyboard input largely inaccessible to this population. Voice recognition technology offers promise to overcoming this barrier, but

currently provides the same barriers of excess complexity and text-based interfaces that prohibit access

to those with limited conceptualization abilities and reading skills. For example, typical voice recognition software applications employ feature-rich text based drop-down menus and require users to read

extensive on-screen text as a means of training the system to their unique voice qualities. This project

addresses these issues by employing proven multimedia, error minimization and other universal design

software development techniques to create a simplified voice recognition application designed to be

independently usable by individuals with a range of intellectual disabilities.
3-72 NIDRR Program Directory FY 2004 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Colorado

Web Enhanced Simulated (WES) Braille

Sopris West Educational Services

4093 Speciality Place

Longmont, CO 80504

Kay.Ferrell@unco.edu

Principal Investigator: Kay Ferrell 720/494-4108

Project Number: H133S040021

Start Date: October 01, 2004

Length: 6 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $74,967

Abstract: This project develops and delivers a high quality, effective, affordable, and efficient webbased braille training system. WES Braille is developed for use by teachers, transcribers, paraprofessionals, and family members. The tool is a computer program that accepts the corded keystrokes

necessary to enter braille without prior software downloads or purchase of special equipment. When

surrounded by a database of rules, information, drill items, and feedback, this tool becomes the heart of

a web-delivered, computer-graded braille drill system.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-73

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Florida

Multimedia Literacy Software for Deaf or Hard-of-Hearing, and Visual

Learners

Vcom3D, Inc.

3452 Lake Lynda Drive, Suite 260

Orlando, FL 32817

dannyr@vcom3d.com

http://www.vcom3d.com

Principal Investigator: Daniel Roush

Public Contact: 407/737-7310, ext. 115; Fax: 407/737-6821

Project Number: H133S040099

Start Date: October 01, 2004

Length: 6 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 04 $74,907

Abstract: This project develops and demonstrates the effectiveness of a multimedia module that

presents a highly detailed representation of an animated human that can: Speak selected words and text

segments, while demonstrating correct mouth movement to form speech sounds; translate selected

words and phrases into American Sign Language (ASL) and/or Signed English; provide ASL definitions of selected English words; and assist students in vocabulary development by suggesting semantically related English words that are found via a sign description look-up search.
3-74 NIDRR Program Directory FY 2004 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Maryland

Delivery of Cost-effective, Real-time, Remote Transcription Services

Institute for Disabilities Research and Training, Inc.

11323 Amherst Avenue

Wheaton, MD 20902

carl.jensema@idrt.com

http://www.idrt.com

Principal Investigator: Carl J. Jensema, PhD

Public Contact: 301/942-4326; Fax: 301/942-4439

Project Number: H133S040017

Start Date: October 01, 2004

Length: 6 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $74,999

Abstract: Many students with disabilities, especially those who have hearing problems, could benefit

from real-time transcription of classroom auditory communication to replace or supplement interpreting. This project develops a training package that allows a school system to set up its own low-cost,

school-operated, remote, real-time transcription service in a school building using off-the-shelf equipment and software.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-75

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

North Dakota

Development and Evaluation of an Accessible Voice recognition System

(AVRS) for Individuals with Intellectual Disabilities

Spirit Lake Consulting, Inc.

Fort Totten, ND 90405

annmaria@spiritlakeconsulting.com

http://www.spiritlakeconsulting.com

Principal Investigator: AnnMaria Rousey DeMars

Public Contact: 310/717-9089

Project Number: H133S040073

Start Date: October 01, 2004

Length: 6 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $74,918

Abstract: This project employs proven multimedia, error minimization, and other universal design

software development techniques to create a simplified voice recognition application that is independently usable by individuals with a range of intellectual disabilities. Individuals with significant cognitive impairments have among the highest incidence of illiteracy. This, combined with the complex and

text based interfaces of mainstream computer programs and operating systems, makes typical keyboard

input largely inaccessible to this population. Voice recognition technology offers promise to overcoming this barrier, but currently provides the same barriers of excess complexity and text-based interfaces

that prohibit access to those with limited conceptualization abilities and reading skills. For example,

typical voice recognition software applications employ feature-rich text based dropdown menus and

require users to read extensive on-screen text as a means of training the system to their unique voice

qualities. Project activities include research, development, and feasibility evaluation of an Accessible

Voice Recognition System (AVRS) that enables students and adults with significant cognitive impairments to more independently control and navigate through computer operating systems and to create a

variety of personal text documents.
3-76 NIDRR Program Directory FY 2004 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Pennsylvania

Access to Passenger Rail Systems: A Universal Approach

Marshall Elevator Company

2015 Mary Street

Pittsburgh, PA 15203

Lvanroosmalen@marshallelevator.com

http://www.marshallaccessibility.com

Principal Investigator: Linda van Roosmalen, PhD 412/401-8194

Public Contact: Rob Jamison 412/431-1340

Project Number: H133S040061

Start Date: October 01, 2004

Length: 6 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $74,974

Abstract: As a result of ADA regulations, rail platforms have been adapted to allow level boarding of

wheeled mobility devices onto passenger rail systems. Since freight cars often share rails with passenger rail cars, differences in car width results in horizontal gaps between passenger rail cars and platforms, creating safety hazards for not only wheelchair users but also for elderly, visually impaired

individuals and other passengers. Existing and formerly proposed solutions to ‘bridge the gap’ can not

be used independently by rail passengers and often require personnel assistance, which easily results in

train delays, raised personnel costs and inflexible travel for wheelchair users. This project researches

and tests the feasibility of a compact device, retrofitted to existing rail car boarding areas to extend up

or down onto the platform to provide quick, safe, easy and independent boarding access for all rail

occupants. This technology includes a universal solution to the rail access problem and solves platform

to rail access for all potential rail riders including individuals using wheeled mobility, children, visually

impaired individuals and the elderly. This device is expected to eliminate rail personnel assistance for

individuals with disabilities boarding or exiting trains, ensuring passenger independence for all train

riders.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-77

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Texas

Development of a Nemeth Math to Latex Back-translator

Logical Software Solutions

8200 Chambray Court

Plano, TX 75025

deepa_gopal@hotmail.com

http://www.logicalsoft.net

Principal Investigator: Deepa Gopal

Public Contact: 972/390-7329; Fax: 972/390-7329

Project Number: H133S040145

Start Date: October 01, 2004

Length: 6 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 04 $75,000

Abstract: This project conducts research to develop a commercial-quality PC-based system for automatically back-translating mathematics encoded in Nemeth Math Braille notation to LATEX. The

system greatly facilitates students, scientists, and engineers with visual impairments to communicate

with their sighted instructors and colleagues. It also assists in learning of mathematics by elementary,

middle, and high school students. Translation of Nemeth Math Braille notation to LATEX is known to

be a hard problem. In an earlier NIDRR funded SBIR project, using the novel approaches of

denotational semantics and logic programming, this company developed a proof-of-concept system

that can back-translate complete mathematical documents containing both Nemeth Math and literary

Braille text to LATEX. However, the prototype system developed does not handle all the spatially laid

out mathematics (matrices and grade school arithmetic and algebraic addition/subtraction problems). In

this project, the company conducts research to extend the prototype system so that spatially laid out

arithmetic can be fully handled.
3-78 NIDRR Program Directory FY 2004 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Texas

Lightweight, Durable, Adjustable Composite (LWDAC) Backrest

Accessible Designs, Inc.

7626 Grissom Road

San Antonio, TX 78251

todd@accessibledesigns.com

http://www.accessibledesigns.com

Principal Investigator: Todd Hargroder

Public Contact: 210/684-6794

Project Number: H133S040036

Start Date: October 01, 2004

Length: 6 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $75,000

Abstract: This project has designed a lightweight, sturdy, user adjustable ergonomically designed

backrest support for ultralight weight wheelchairs that provides necessary postural support and provides a variety of positions to ease dressing, propulsion, and seated comfort. The backrest improves

user comfort, function, and posture during multiple activities of daily living. The innovative design

enables the user to adjust the backrest position while seated in their wheelchair. The benefits of the

design are lightweight, high strength, adjustability, and durability. The backrest is adaptable to most

ultralight manual wheelchairs. It is designed with a battery of features that benefit the user including

height selection, backrest angle adjustment, backrest to axle positioning, and lumbar support. The

purpose of the research is to create and test prototypes to identify issues that need to be addressed to

develop a practical commercial device. The prototypes are tested to insure that 1) their dimensions fit a

wide variety of ultralight wheelchairs, 2) they meet or exceed currently approved ANSI/RESNA

wheelchair and seating standards, and 3) they perform equivalently or better than other comparable

manual wheelchair backrests on ANSI/RESNA tests. A consumer and clinician focus group evaluates

the prototype models and their feedback is incorporated into the design to be tested to the ANSI/

RESNA standards.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-79

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Virginia

An Adaptive Haptic Interface for Individuals with Disabilities

Barron Associates, Inc.

1410 Sachem Place, Suite 202

Charlottesville, VA 22901

olowin@barron-associates.com

http://www.barron-associates.com

Principal Investigator: Aaron B. Olowin

Public Contact: 434/973-1215; Fax: 434/973-4686

Project Number: H133S040119

Start Date: October 01, 2004

Length: 6 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $74,995

Abstract: This project develops an affordable assistive technology in the form of a motorized joystick

with position sensors and associated software that permits the individuals with neuromuscular disorders

to operate computers, household appliances, machinery, powered wheelchairs, and other vehicles, with

a minimum of fatigue. The system adapts quickly and robustly to a wide variety of different disabilities, including manifestations of spasticity, dystonia, rigidity, and tremors. The hardware and software,

which incorporates recent advances in dynamical modeling, filtering, and control, also provides refined

measures of fatigue and functional motor ability. The technology is evaluated using a rigorous quantitative technique based on established principles.
3-80 NIDRR Program Directory FY 2004 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Arizona

Development of Collapsible Folding Manual Wheelchair - Phase II

Three Rivers Holdings, LLC

1826 West Broadway Road, Suite 43

Mesa, AZ 85202

david@3rivers.com

http://www.3rivers.com

Principal Investigator: Chris Willems

Public Contact: David Boninger 480/833-1829; Fax: 480/833-1837

Project Number: H133S030016

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 03 $247,048; FY 04 $252,848

Abstract: In Phase I, this project designed, built, and conducted bench-top testing of a compact,

forward-folding, ultralight manual wheelchair with an innovative design that incorporates “swingdown” access wheels for navigation in confined areas. This facilitates access to narrow environs such

as those encountered in compact dwellings, offices, restrooms, and transportation settings. When using

the access wheels, the wheelchair also fits down the aisle of airplanes and collapses to be stowed in the

overhead compartment. The prototype has an adjustable axle, adjustable backrest and seat angle, and a

folding design that acts like a rigid frame. Testing of the prototype confirmed that it met or exceeded

ANSI/RESNA standards, and it performed equivalently or better than other comparable ultralight

manual wheelchairs on those standards. In Phase II, the project: (l) continues to make design improvements to further maximize functionality and ease of use, (2) verifies that the new design meets ANSI/

RESNA standards, (3) has wheelchair users evaluate the prototype after use in an Activities of Daily

Living Course, and (4) has users take the chair home for an extended trial-use period that allows for an

in-depth evaluation of the prototype wheelchair and allows users to compare the prototype with their

personal wheelchair on a wide variety of dimensions.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-81

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Arkansas

Absolute Head Tracking for Accessing Assistive Devices

InvoTek, Inc.

1026 Riverview Drive

Alma, AR 72921

tjakobs@invotek.org

http://www.invotek.org

Principal Investigator: Thomas Jakobs

Public Contact: 479/632-4166; Fax: 479/632-6457

Project Number: H133S030165

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 03 $267,458; FY 04 $232,542

Abstract: This research develops a new absolute head-tracking strategy for people who require an

assistive device to manipulate a computer cursor. This absolute system links the position of a computer

cursor to the direction in which the user’s head is pointing, and stays aligned with the user’s head

regardless of repositioning movements. This system enables a user to guide a cursor aiming his or her

head at a desired target location, simplifying the task of learning and utilizing such a system. The

design takes advantage of low-cost infrared camera, and requires only three passive sensors to be

attached to the user.
3-82 NIDRR Program Directory FY 2004 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

California

Automated Closed Captioning

Automatic Sync Technologies

4460 Quicksilver Court

Hayward, CA 94542

kevin@automaticsync.com

http://www.automaticsync.com/caption

Principal Investigator: Kevin Erler, PhD

Public Contact: 510/582-3437; Fax: 510/582-3437

Project Number: H133S040129

Start Date: October 01, 2004

Length: 24 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $249,971; FY 05 $249,789

Abstract: The goal of this project is to produce an automated captioning system that provides significant advantages in cost, turnaround time, and convenience. The project applies automatic speech

processing techniques to the automation of captioning. The limitations of speech recognition as commonly found in commercial applications, which must rely on pre-defined grammars that must try to

anticipate anything that can be said, or on training to individual speakers, are circumvented using

program transcripts to focus on alignment and segmentation in closed captioning display. This tightly

constrains the problem domain, and avoids high error rates associated with fully automated recognition. The Phase I prototype showed the feasibility of automating captioning using this approach. In

Phase II, the project completes research and development and incorporates enhancements based on

trial feedback, including more sophisticated acoustic models robust to real-world data, an improved

user interface, performance upgrades based on new user data, and search and indexing capabilities.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-83

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Colorado

Job Quest, an Internet-based, Self-directed Career Exploration and

Assessment System For Students and Adults with Significant

Intellectual Disabilities

AbleLink Technologies, Inc.

528 North Tejon Street, Suite 100

Colorado Springs, CO 80903-1158

dan@ablelinktech.com

http://www.ablelinktech.com

Principal Investigator: Daniel K. Davies

Public Contact: 719/592-0347; Fax: 719/592-0348

Project Number: H133S040137

Start Date: October 01, 2004

Length: 24 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 04 $250,000; FY 05 $250,000

Abstract: This project develops and evaluates Job Quest, an Internet-based, self-directed multimedia

career exploration and assessment system for improved job placement of students and adults with

mental retardation. The Job Quest system: (l) facilitates self-directed exploration of jobs and job tasks

via a media-enriched computer environment using digital pictures, audio, and video; (2) enables job

developers to identify jobs that match the individual’s job interests through automated searching of the

Department of Labor’s O*NET jobs database; and (3) provides the ability for job developers and

employment specialists to customize the content of the system to represent specific jobs which are

available in the local community.
3-84 NIDRR Program Directory FY 2004 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Maryland

StoryTiles: Programmable Manipulatives to Improve Language,

Sequencing, Theory of Mind, and Play Skills in Children with Autism

Intelligent Automation, Inc.

15400 Calhoun Drive

Rockville, MD 20855

smayhew@i-a-i.com

http://www.i-a-i.com

Principal Investigator: Shannon Beltz Mayhew

Public Contact: 301/294-5230; Fax: 301/294-5201

Project Number: H133S040132

Start Date: October 01, 2004

Length: 24 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $250,000; FY 05 $250,000

Abstract: This project develops and field tests StoryTiles, a device with programmable manipulatives

that foster language, sequencing, theory of mind, and play skills among children with autism. Children

can to use this device to experiment with storytelling, and in doing so, work with sequencing, creative

play, and language structures as they manipulate programmable, tangible objects. In this effort, IAI

conducts a study using a prototype in a preschool classroom to determine ways StoryTiles can be used

for special needs inclusion activities within a mainstream classroom. Software and device designs are

improved, and researchers build 15 Phase II StoryTiles devices with accompanying story publishing

software. In addition, IAI works with Laureate Learning, Inc. to integrate their language learning

software with StoryTiles. IAI also conducts focus group with therapists, teachers, and parents of

children with autism to produce material for a StoryTiles instructional guide. Finally, IAI conducts field

tests with children with autism to determine the educational effectiveness of the Phase II device.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-85

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Maryland

Web-Based Telerehabilitation for Home Assessment and Monitoring

AnthroTronix, Inc.

8737 Colesville Road, 10th Floor

Silver Spring, MD 20910

info@atinc.com

http://www.atinc.com

Principal Investigator: Amy Brisben, PhD 301/495-0770, ext. 344

Public Contact: Regina Reed 301/495-0770, ext. 348; Fax: 301/585-9075

Project Number: H133S030037

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 03 $292,557; FY 04 $206,879

Abstract: This project aims to enhance functionality and clinically evaluate CosmoWebTM, a remote

therapy monitoring and teleassessment system. Children with disabilities perform therapeutic exercises

while playing interactive software games featuring CosmoBotTM, an alien robot. CosmoWebTM

consists of: (1) games; (2) Mission Control, a child-friendly computer interface system with customized

and off-the-shelf therapy sensors, designed to interact with CosmoBotTM’s games; and (3) video,

audio, and data transmission capabilities for telerehabilitation purposes. Custom games address therapy

goals more effectively than currently-existing, off-the-shelf games designed for entertainment more

than educational or therapeutic purposes. While playing these games using body movement, or gestural

interfaces, the child carries out exercises designed to meet therapy goals. CosmoWebTM allows the

therapist to remotely monitor the therapy-game session during or after the session takes place. Data

from many sessions can be viewed to evaluate the child’s progress in meeting therapy goals over time.

Objectives are to finalize CosmoWebTM design and development and evaluate the system effectively

in two telerehabilitation scenarios: between two clinics and between clinic and home.
3-86 NIDRR Program Directory FY 2004 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Maryland

CD-ROM to Teach Cued Speech

Institute for Disabilities Research and Training Inc.

11323 Amherst Avenue

Wheaton, MD 20902

angela@idrt.com

http://www.idrt.com

Principal Investigator: Angela Bednarczyk, PhD

Public Contact: 301/942-4326; Fax: 301/942-4439

Project Number: H133S030009

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $249,979; FY 04 $249,999

Abstract: This project develops a self-taught, self-paced, interactive computer program to teach Cued

Speech. The instructional program is distributed on a CD-ROM. In the previous research phase, all of

the content and planning for a Cued Speech instructional computer program was completed and

prototype software that showed one introductory section and two classes of materials was created. The

current phase involves the refining of the content and the completed design of software containing all

introductory and background information and 15 classes. The software is then tested, revised, and

prepared for formal production and distribution. This project results in complete development of a CDROM that contains a simple-to-use, 15-lesson instructional program in Cued Speech and background

information about its history and the people who use it (e.g., professionals, family members).
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-87

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Massachusetts

Natural Language Speech Access of Computers by the Disabled

Amazability, Inc.

14 Lorraine Circle

Waban, MA 02468

amazability@rcn.com

http://www.amazability.com

Principal Investigator: Kenneth R. Ingham, PhD

Public Contact: 617/795-0134

Project Number: H133S030005

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $219,595; FY 04 $249,564

Abstract: This project implements a natural language processor to facilitate complex interactions and

to make the overall system readily usable by the computer non-literate or non-technical. The Phase I

work confirmed that a speech-based set of complex applications, using automatic speech recognition

for command and control, could be effectively used by people with visual impairments. Mechanisms

were implemented and tested that allowed users to avoid becoming lost owing to any form of interruption. The work showed that, while simple commands could be successfully recognized, longer complex commands were more difficult because users tended to lose their place while assembling their

precise syntax. Therefore, the design and implementation of a natural language processor to support

the issuing of complex instructions was indicated. In this phase, the automatic speech recognition

subsystem is improved in accordance with the results of the Phase I work and its vocabularies increased to approximately 120,000 words composed of dynamically variable 50,000 word language

models. The resulting large vocabulary recognition system, supporting natural language interaction is

evaluated through focus group and human subject testing. The Adept 1, equipped with a natural

language processor, can serve as a universal reading system for multipart documents (digital, analog,

hypertext, etc.). As an integrated voice-based system, it can also support web access, e-mail, and word

processing, thereby becoming a universal access tool for reading and writing. By providing very large

vocabulary automatic speech recognition and natural language processing of commands, the technical

nature of the computer system is minimized.
3-88 NIDRR Program Directory FY 2004 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

New York

Development of an Authoring Tool to Allow Teachers to Create AudioTactile Materials for Blind and Visually Impaired Students

Touch Graphics

330 West 38 Street, Suite 1204

New York, NY 10018

sl@touchgraphics.com

http://www.touchgraphics.com

Principal Investigator: Steven Landau

Public Contact: 212/375-6341; Fax: 646/452-4211

Project Number: H133S030036

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $232,243; FY 04 $242,006

Abstract: This project focuses on the design, implementation, and evaluation of an authoring tool that

allows teachers to create customized audio-tactile educational materials for students who are blind, or

have other visual or print disabilities. Teachers create raised-line and textured graphic imagery on premade templates sheets, place these sheets on a touch-sensitive device connected to a computer, and

program the graphic with descriptive audio “tags.” Later, a student interacts with the system by pressing regions and shapes on the tactile surface to instigate appropriate audio responses. The goals of this

project are: (1) creation of a market-ready suite of software applications for creating, reading, and

transferring teacher-produced audio-tactile courseware; (2) a software sharing website to encourage

wide-scale adoption of the authoring tool product and to proliferate the teacher-generated materials; (3)

findings on the potential for adapting a variety of methods for producing tactile graphic images to the

authoring tool system; (4) a complete braille tutorial application as a demonstration of the system’s full

capabilities, ready for distribution via Internet; (5) results of a large scale evaluation of teacher-produced audio-tactile materials in the United States and in selected foreign countries; and (6) investigation of the potential for the authoring tool system to be adapted for use in the transcription of entire

illustrated textbooks and full-scale curricula.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-89

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

New York

Visual-Spatial Math Problem Solving Strategy Intervention on a

Handheld Wireless Device for Math Disabilities

Learnimation

53 West 90th Street #4

New York, NY 10024

Principal Investigator: Sarah Manning

Project Number: H133S040123

Start Date: October 01, 2004

Length: 6 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $75,000

Abstract: This project researches and develops a reliable and valid handheld-based visual-spatial math

intervention tool for students with learning disabilities (LD) in grades 1-5. This software intervention,

based on validated educational research and effective intervention strategies, helps students with LD

build expertise in mathematical problem solving. It provides instruction and practice in the application

of visual-spatial schematic representations to model and correctly decode mathematical information.

The application operates on a wireless handheld computing device, in the hands of a student, wherever

the student is learning mathematics. The tool is specifically designed to develop problem-solving

capacity that extends beyond the interactive computing platform. It is designed to integrate teacher

input as well as provide explicit feedback to teachers regarding effective intervention strategies.
3-90 NIDRR Program Directory FY 2004 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Pennsylvania

The Next Generation of Audio-Based Assistive Technology: An

Instantaneous Customizable Audio Pegging System

TranXecute

1009 Arch Street; 2nd Floor

Philadelphia, PA 19107

lchang@tranxecute.com

www.tranxecute.com

Principal Investigator: Leonard Chang

Public Contact: 215/922-1088; Fax: 215/922-1068

Project Number: H133S030030

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $251,900; FY 04 $247,520

Abstract: This project develops an Audio Pegging System which allows for the instant lacing of an

audio source to its corresponding transcript or vice versa, utilizing a human voice rather than a computer synthesizer, and enables the user to click on any part of the text and hear its matching audio

immediately. It is akin to a word processor with audio processing capabilities, allowing the user to

instantly create a customized text-and-audio-laced file, which users can cut and paste, and e-mail just

like a word processor document. More importantly, this product enables users to search efficiently

through audio. In Phase I, the project successfully created a proof-of-concept prototype, which has

proven the technical merit and feasibility of the Audio Pegging System (APS). Based on this foundation, Phase II expands on the proof-of-concept prototype to construct a full application version of this

system to be made available to the general public.v:
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-91

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Pennsylvania

GOODFEEL® Braille Music Translator

Dancing Dots Braille Music Technologies, LP

1754 Quarry Lane

P.O. Box 927

Valley Forge, PA 19482-0927

info@DancingDots.com

http://www.dancingdots.com

Principal Investigator: William R. McCann

Public Contact: 610/783-6692; Fax: 610/783-6732

Project Number: H133S030040

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 03 $250,000; FY 04 $250,000

Abstract: This project integrates SharpEye’s scanning functions and Lime’s editor with GOODFEEL

to create a single application that allows one to scan, edit, and transcribe a printed page into the equivalent music braille through a single user interface equally accessible to both sighted or blind users. In

1997, Dancing Dots released GOODFEEL®, the world’s first Braille music translator. To create

braille scores, sighted non-specialists, who need not know braille but who must read printed music,

employ mainstream and assistive technology in a three-step process: scanning (SharpEye), editing

(Lime), and transcribing (GOODFEEL). Although GOODFEEL produces high-quality music braille,

users have too often found it overly labor-intensive and its relationship to mainstream music software

difficult to understand, discouraging many overworked or unsophisticated potential users.
3-92 NIDRR Program Directory FY 2004 - Technology for Access and Function

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Utah

Practical Force-Feedback System for Upper-Limb Prosthesis Users

Motion Control, Inc.

2401 South 1070 West, Suite B

Salt Lake City, UT 84119-1555

harold@utaharm.com

http://www.utaharm.com

Principal Investigator: Harold H. Sears, PhD

Public Contact: 801/978-2622; 888/696-2767; Fax: 801/978-0848

Project Number: H133S030177

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 03 $249,062; FY 04 $250,938

Abstract: This project develops a practical Grip-Force Feedback (GFF) system for upper-limb prosthesis users, which enables wearers to sense the grip force of their terminal device (TD). During Phase

I, successful prototypes of a grip force sensor and a method of direct force feedback to the wearer were

developed. Furthermore, several methods for gravity compensation of a body-powered version of the

Utah Arm were designed, built, and tested. In Phase 2, Motion Control further develops these systems

toward field trial versions, which are tested with prosthesis wearers. Preliminary experiments have

demonstrated that force feedback can improve the prosthesis wearer’s control of an electric TD. By

developing a practical system to implement force feedback into a myoelectric hand, the next generation

of myoelectric hand wearers will have potentially greatly improved control, more natural sensation of

their prehension, and reduced dependence on visual feedback to moderate grip force.
NIDRR Program Directory FY 2004 - Technology for Access and Function 3-93

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Virginia

Remote Access Screen Reader Architecture Math System (RA SRAMS)

Automated Functions, Inc.

7700 Leesburg Pike, Suite 420

Falls Church, VA 22043

autofunc@cs.com

Principal Investigator: Ronald A. Morford

Public Contact: 703/883-9797; Fax: 703/883-9798

Project Number: H133S030012

Start Date: October 01, 2003

Length: 24 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $250,000; FY 04 $250,000

Abstract: The objective of the Remote Access Screen Reader Architecture Math System (RA

SRAMS) is to design, develop, and test a computer based system, which enables remote access to

math by students and teachers with visual impairments. The access is via the Internet so the student and

teacher may be at different locations when using RA SRAMS. The software uses successful screen

reading architecture to enable visually impaired students to independently manipulate math expressions

to solve math problems. RA SRAMS provides tools that make it easier for a student with a visual

impairment to succeed in higher math (i.e., Algebra I, Algebra II, Trigonometry, and Calculus). This

system provides the means for thousands of visually impaired students to succeed in higher math and

therefore be qualified to fill the ever-increasing technical job and educational positions.

Contents

Rehabilitation Research and Training Centers (RRTCs) ............................................................................ 3

Disability and Rehabilitation Research Projects ...................................................................................... 16

Field Initiated Projects (FIPs) ............................................................................................................... 19

Small Business Innovative Research (SBIR), Phase I ............................................................................. 46

Small Business Innovative Research (SBIR), Phase II ............................................................................ 47

Independent Living and Community Integration

Independent living recognizes that each person has the right to independence through

maximum control over his or her life, based on an ability and opportunity to make

choices in performing everyday activities. These activities include: managing one’s

personal life; participating in community life; fulfilling social roles, such as marriage,

parenthood, employment, and citizenship; sustaining self-determination; and minimizing

physical or psychological dependence on others. Community integration incorporates

ideas of both place and participation, so that a person is physically located in a

community setting, and participates in community activities. Issues of consumer

direction and control also are integral to concepts of community integration. NIDRR’s

research program encourages independent living and community integration to achieve

more successful outcomes for people with disabilities, and it fosters the development

of innovative methods to achieve these outcomes and to measure achievement.

NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

California

Rehabilitation Research and Training Center on Personal Assistance

Services

University of California, San Francisco

Department of Social and Behavioral Sciences

3333 California Street, Suite 455

San Francisco, CA 94118-0612

pas@itsa.ucsf.edu

http://www.pascenter.org

Principal Investigator: Charlene Harrington, PhD, RN 415/476-4030

Public Contact: 866/727-9577; 415/502-7190 (V); 415-502-5216 (TTY); Fax: 415/476-6552

Project Number: H133B031102

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $900,000; FY 04 $900,000; FY 05 $900,000

Abstract: This project provides research, training, dissemination, and technical assistance on issues of

personal assistance services (PAS) in the United States. Center projects focus on: (1) the relationship

between formal and informal PAS and caregiving support, and the role of AT in complementing PAS;

(2) policies and programs, barriers, and new models for PAS in the home and community; (3)

workforce development, recruitment, retention, and benefits; and (4) workplace PAS models that

eliminate barriers to formal and informal PAS and AT at work. The Center is based at the University of

California, San Francisco, and includes the Topeka Independent Living Resource Center, InfoUse, the

Paraprofessional Healthcare Institute, the Institute for the Future of Aging Services, as well as faculty

members at the University of Maryland, Baltimore County Policy Sciences Graduate Program, the

West Virginia University Job Accommodation Network, and the University of Michigan’s Institute of

Gerontology and the Department Health Management and Policy. A Blue Ribbon Advisory Committee of PAS users, disability advocates, business leaders, independent living center leaders, and academics provide guidance to the project.
4-4 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Florida

Rehabilitation Research and Training Center for Children’s Mental

Health

University of South Florida

Florida Mental Health Institute

13301 Bruce B. Downs Boulevard MHC2335

Tampa, FL 33612-3807

kutash@fmhi.usf.edu

http://rtckids.fmhi.usf.edu

Principal Investigator: Robert Friedman, PhD 813/974-4640

Public Contact: Krista Kutash, PhD 813/974-4661 (V); Fax: 813/974-6257

Project Number: H133B040024

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $835,000; FY 05 $835,000

Abstract: The Research and Training Center Children’s Mental Health conducts an integrated set of

research projects designed, in the short run, to enhance knowledge about effective implementation of

systems of care, and, in the long run to make it possible for children with serious emotional disturbances to live, learn, work, and thrive in their own communities. The Center has developed a theory of

factors that contribute to effective implementation; within that theory is a strong emphasis on the

importance of understanding from a systemic perspective the interrelationship between the different

factors, and their relationship to the community culture and context in which a service delivery system

exists. The Center has a set of six interconnected research projects that use both quantitative and

qualitative methods, and are holistic in their focus, to further test and develop its theory. The Center

translates new knowledge from research into change in policy and practice through a targeted program

of training, consultation, technical assistance, publication and dissemination. To support these efforts,

the Center maintains dissemination partnerships with a range of organizations committed to help

present research findings in formats well-suited for key audiences of state and local policy makers,ad:

family organizations, researchers and representatives of related service sectors.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Aging with

Developmental Disabilities

University of Illinois at Chicago

Department of Disability and Human Development MC 626

College of Applied Health Sciences

1640 Roosevelt Road

Chicago, IL 60608-6904

rrtcamr@uic.edu

http://www.uic.edu/orgs/rrtcamr

Principal Investigator: Tamar Heller, PhD 312/413-1537

Public Contact: Alan Factor, Associate Director 800/996-8845 (V); 312/413-1510 (V); 312/413-0453

(TTY); Fax: 312/996-6942

Project Number: H133B031134

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 03 $750,000; FY 04 $749,998; FY 05 $750,000

Abstract: The mission of the RRTCADD is to have a sustained beneficial impact on the health and

community inclusion of adults with intellectual and developmental disabilities (I/DD) as they age

through a coordinated set of research, training, and dissemination activities. Major goals are: (1)

improving health and function of adults with I/DD, (2) enhancing caregiving supports and transition

planning among older caregivers and other family members, and (3) promoting aging and disability

friendly environments that enable adults with I/DD to participate in community life. Each goal is

addressed through coordinated and complementary sets of activities within the core areas. Projects

promoting health and functioning include: examination of age-related changes, epidemiological surveys, research on health care utilization, and development of community-based health promotion

interventions. To enhance caregiving supports and transition planning, RRTCADD research includes

epidemiological surveys on family demographic and health characteristics, including families of

minority backgrounds and families of persons with dual diagnoses of I/DD and psychiatric impairments; sibling roles and interventions in transition planning; and consumer direction in family support.

Projects examining aging and disability-friendly environments include research to identify features

ofto: communities and residences that hinder and assist community integration as people with I/DD

age, state policies regarding nursing home use, and dementia care in family homes and other community residences. Training and dissemination activities involve collaborations with national provider,

professional, and consumer organizations to enhance skills and to promote progressive interventions

and policies.
4-6 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Full Participation in

Independent Living

Schiefelbusch Institute for Life Span Studies

1000 Sunnyside Avenue; 4089 Dole

Lawrence, KS 66045

rtcfpil@ku.edu

http://rtcfpil.org

Principal Investigator: Glen W. White, PhD 785/864-4095

Public Contact: 785/864-4095 (V); 785/864-0706 (TTY); Fax: 785/864-5063

Project Number: H133B000500

Start Date: January 01, 2001

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $499,876; FY 02 $661,864; FY 03 $626,364; FY 04 $499,876

Other Funding: FY 02 $299,999 (NIDRR Dissemination & Utilization)

Abstract: Through research, training, and dissemination, this project makes available person-environment strategies that enable full participation in society by persons with disabilities from diverse cultures, varying socioeconomic strata, and emerging disability populations. This mission is implemented

through multiple research and training activities that are influenced by independent living (IL) philosophy and values; for example, participatory action research is emphasized, in which consumers take an

active role throughout the research process. The RRTC develops, tests, and uses measurement tools to

investigate the interactional relationship between personal and environmental factors and their effects

on full participation in IL by the designated populations. Based on the project’s Analytical Research

Framework, the four core areas of intervention development and testing include: (1) increasing the

knowledge base about the emerging universe of disability, (2) community participation and wellness,

(3) cultural IL accommodations, and (4) personal and systems advocacy.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-7

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center in Rehabilitation of

Persons with Long-Term Mental Illness

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

mfarkas@bu.edu; erogers@bu.edu

http://www.bu.edu/cpr/research/rtc2004/

Principal Investigator: Marianne Farkas, ScD; E. Sally Rogers, ScD 617/353-3549

Public Contact: E. Sally Rogers, ScD 617/353-3549; Fax: 617/353-7700

Project Number: H133B990023

Start Date: October 01, 1999

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 99 $749,990; FY 00 $749,990; FY 01 $350,000; FY 02 $749,990; FY 03

$749,990; FY 04 $0 (No-cost extension through 6/30/2005)

Other Funding: FY 00 $300,000 (Center for Mental Health Services); FY 01 $300,000 (CMHS); FY

03 $300,000 (CMHS)

Abstract: This Center studies the recovery and rehabilitation of people with long-term mental illness

and the individual and environmental factors that promote recovery. It is linked by its programmatic

focus on three specific core areas of, recovery dimensions, rehabilitation interventions, and alternative

interventions; is strengthened by the use of the appropriate research strategies; and is assisted by a

vigorous program of training, technical assistance, and dissemination activities designed to maximize

the impact of the center at all levels in the field of psychiatric rehabilitation. The research projects are

designed to have an impact on the field at the personnel, program, and system levels. Research projects

use a participatory research process with significant input from consumers and other stakeholders, and

culminate in dissemination, training, or technical assistance activities to maximize the impact of the

research program. The Training, Dissemination, and Technical Assistance (TDTA) projects are designed to provide exposure, experience, and expertise to knowledge transfer. The TDTA component

produces new technologies in recovery and rehabilitation, and increases the likelihood that researchers,

service providers, and others use the cumulative knowledge developed by this Center.
4-8 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center Recovery and Recovery

Oriented Psychiatric Rehabilitation for Persons with Long Term

Mental Illness

Boston University

Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215-1203

mfarkas@bu.edu; erogers@bu.edu

http://www.bu.edu/cpr/research/rtc2004/

Principal Investigator: Marianne Farkas, ScD; E. Sally Rogers, ScD 617/353-3549

Public Contact: E. Sally Rogers, ScD 617/353-3549; Fax: 617/353-7700

Project Number: H133B040026

Start Date: November 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $750,000; FY 05 $750,000

Abstract: This project focuses on the concepts and dimension of recovery and the various factors that

inhibit and facilitate recovery from long-term mental illness by a comprehensive and meritorious set of

research projects and training, technical assistance, and dissemination activities. The research and the

training, dissemination, and technical assistance programs are organized into the following three

programmatic areas of investigation and development: concepts and dimensions of recovery; factors

enhancing recovery, and factors inhibiting recovery. The research projects are designed to have an

impact on the field at multiple levels, including the personnel level as well as the program and system

levels. Research projects use a participatory research process with significant input from consumers

and other stakeholders, and culminate in dissemination, training, or technical assistance activities to

maximize the input of the research program. The Training, Dissemination, and Technical Assistance

(TDTA) projects are designed to provide exposure, experience, and expertise levels of knowledge

transfer. The TDTA program produces new technologies in recovery and psychiatric rehabilitation, as

well as increases the likelihood that researchers, service providers, and others use the cumulative

knowledge developed by the RRTC. The RRTC is tied together by its programmatic focus on three

specific core areas, strengthened by the use of appropriate research strategies, and assisted by a vigorous program of training, technical assistance, and dissemination activities designed to maximize the

impact of the RRTC at all levels in the field of psychiatric rehabilitation.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-9

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Minnesota

Research and Training Center on Community Living (RTC/CL)

University of Minnesota

The Institute on Community Integration

204 Pattee Hall, 150 Pillsbury Drive, SE

Minneapolis, MN 55455

lakin001@umn.edu

http://rtc.umn.edu

Principal Investigator: Charlie Lakin, PhD 612/624-5005

Public Contact: Sheryl Larson, PhD 612/625-6024; Fax: 612/625-6619

Project Number: H133B031116

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Dawn Carlson, PhD, MPH

NIDRR Funding: FY 03 $750,000; FY 04 $750,000; FY 05 $750,000

Other Funding: FY 04 $300,000 (Administration on Developmental Disabilities), $70,000 (Centers

for Medicare and Medicaid Services), $300,000 (Illinois Planning Council on Developmental Disabilities), $25,000 (Centers for Disease Control and Prevention, Center on Birth Defects and Developmental Disabilities), $300,000 (College of Direct Support web-based training program), $30,000 (Partners

in Community Supports), $60,000 (University of Minnesota)

Abstract: The Center conducts research, training, technical assistance, and dissemination to enhance

inclusion and self-determination of citizens with intellectual and developmental disabilities (ID/DD).

The research program has six outcome areas: policy studies, database supports for full participation,

self-determination and consumer-control, workforce development, and quality assessment and improvement systems. The research program within the priority areas includes: (1) research syntheses of

the state of knowledge and practice; (2) secondary analyses of high quality, topically relevant national

and state data sets; (3) case studies of best practices; (4) evaluation of demonstration efforts to improve

policy and practice; (5) survey and interview studies of critical issues; and (6) group process studies

with key constituencies. An integrated intramural training program addresses the development of

skilled disability researchers and community service professionals. Outreach training programs provide

training and technical assistance to agencies and individuals providing support to people with ID/DD,

including members of their families. The College of Direct Support provides on-line interactive multi

media training to thousands of direct support professionals across the US. Outreach programs include

conferences and workshops for a wide variety of national, regional, and state audiences, a state-of-theart conference, annual “Reinventing Quality” conference, and intensive technical assistance with

community organizations, including advocacy and self-advocacy organizations. The Center disseminates practical information to targeted audiences through its internal publication program that includes:

IMPACT, Policy Research Brief, DD Data Brief, and Frontline Initiative. It maintains high standards

for scholarly productivity and publication through books, journal articles and technical reports. About

18,000 people visit Center websites each month for access to view publications or other information on

best practices in person-centered services (“QualityMall.org”), national statistics on services and

expenditures, the direct support workforce, and other contemporary topics.
4-10 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Independent Living

Management (RRTC-ILM)

The Western New York Independent Living Project, Inc.

3108 Main Street

Buffalo, NY 14214-1384

jmoffat@wnyilp.org

http://www.wnyilp.org/RRTCILM

Principal Investigator: Douglas J. Usiak

Public Contact: John Moffat 716/836-0822; Fax: 716/835-3967

Project Number: H133B000002

Start Date: November 01, 2000

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $600,000; FY 01 $600,000; FY 02 $600,000; FY 03 $600,000; FY 04

$600,000

Abstract: To help Centers for Independent Living (CIL) become integrated more fully with their

communities, this project identifies and applies best practices, finding examples from both inside and

outside the CIL network. The work is conducted embracing, supporting, and emulating the principles

of the independent living philosophy, which encompass consumer control, self-help, advocacy, peer

relationships, peer role models, and empowerment. The seven projects of the RRTC-ILM are: (1)

developing a database of CIL resources, aggregating the information to develop and implement a set of

related research, training, and dissemination projects whose best practices help to build a secure economic foundation for CILs; (2) designing and testing options for generating funding from alternative

sources, through collaborations with others that include building business development strategies; (3)

identifying best practices and developing test programs that allow CILs to expand their services to

older people and youth with disabilities and their families, including those from diverse cultural backgrounds, and to interface with existing educational and transitional programs to prepare the elderly,

children and youth for independent living; (4) modifying and testing management models so those

strategies benefit CILs; (5) investigating CIL and VR agency policies related to collaborations, and

designing strategies for innovative partnerships that promote employment outcomes for individuals

with disabilities; (6) coordinating activities with the Rehabilitation Services Administration and providing instruments, curricula, methodologies, resource guides, and research findings; and (7) providing

training and information for CIL policy-makers, administrators, and advocates on the RRTC’s research

findings and identified strategies.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-11

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Traumatic Brain

Injury Interventions

Mount Sinai School of Medicine

Research and Training Center

One Gustave L. Levy Place, Box 1240

New York, NY 10029

wayne.gordon@mssm.edu

http://www.mssm.edu/tbinet

Principal Investigator: Wayne A. Gordon, PhD

Public Contact: 212/659-9372 (V); 212/241-8978 (TTY); Fax: 212/348-5901

Project Number: H133B040033

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 04 $700,000; FY 05 $700,000

Abstract: The research program includes two randomized clinical trials (RCTs) and two projects

supportive of better everyday interventions and better research: Research Study 1 (R1) is an RCT of a

treatment for depression: cognitive behavioral therapy, adapted to address the unique cognitive and

behavioral challenges of people with TBI that often pose barriers to treating depression, a major factor

in reducing post-TBI quality of life, is compared to supportive therapy. In R2, a second RCT,

a.standard day treatment program is compared to a similar program (Executive Plus), augmented with

modules to improve executive functioning and attention training. R3, Support for Evidence-Based

Practice, evaluates all published research on post-TBI interventions and assessment of outcomes; it

serves as a national resource for disseminating the results. It also implements three PAR-based analyses

of high priority areas, including meta-analyses if appropriate. In addressing improved outcome measurement, R4 focuses on the PART instrument, a measure of participation currently being tested within

eight TBI Model Systems. R4 focuses on creating a subjective approach to serve as a complement to

the PART’s current focus on objective assessment. A major focus of the RRTC is placed on capacity

building of clinical and research professionals: to address the need for better day-to-day interventions

in the lives of people with TBI. Often their medical needs are misread, their brain injury goes unidentified and they find services and accommodations inappropriate. Capacity building focuses on students

early in their educational career - to help shape career choice and points of view; graduate and postgraduate students; and practicing “gate keepers” in the community, primarily psychologists and physicians.
4-12 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center to Improve Services for

Children with Serious Emotional and Behavioral Disabilities and Their

Families

Portland State University

Regional Research Institute

School of Social Work

P.O. Box 751

Portland, OR 97207-0751

gordonL@pdx.edu

http://www.rtc.pdx.edu

Principal Investigator: Barbara Friesen, PhD

Public Contact: Lynn Gordon, Associate Director and Conference Coordinator 503/725-4166; Fax:

503/725-4180

Project Number: H133B990025

Start Date: October 01, 1999

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 99 $725,000; FY 00 $725,000; FY 01 $300,000; FY 02 $725,000; FY 03

$725,000; FY 04 $0 (No-cost extension through 9/30/2005)

Other Funding: FY 99 $150,000 (Center for Mental Health Services (CMHS)); FY 00 $155,000

(CMHS); FY 01 $570,000 (CMHS); FY 03 $500,000 (CMHS); FY 04 $300,000 (CMHS)

Abstract: This project conducts an integrated set of research, training, and technical assistance activities to study and promote effective, community-based, culturally competent, family-centered, individualized and strength-based services for children and youth with emotional or behavioral disorders and

their families. Research issues include caregivers and employment, inclusive child care, early intervention, education and service planning, service delivery, training and mentoring.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-13

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Oregon

Rehabilitation Research and Training Center for Community

Integration for Individuals with Disabilities, Strengthening Family and

Youth Participation in Child and Adolescent Mental Health Services

Portland State University

Regional Research Institute

School of Social Work

P.O. Box 751

Portland, OR 97207-0751

gordonL@pdx.edu

http://www.rtc.pdx.edu

Principal Investigator: Barbara Friesen, PhD 503/725-4166

Public Contact: Lyn Gordon, Associate Director for Training and Technical Assistance 503/725-

4114; Fax: 503/725-4180

Project Number: H133B040038

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 04 $835,000; FY 05 $835,000

Abstract: This project conducts research, training, and technical assistance activities to study and

promote effective, community-based, culturally competent, family-centered, individualized, and

strength-based services for children and youth with emotional or behavioral disorders and their families. Projects include: (1) “Community Integration (CI) of Transition-Age Youth,” designed to gain

understanding of CI and related concepts from the perspectives of transition-age youth, young adults,

and caregivers; (2) “Transforming Futures: Research on Expanding the Career Aspirations of Youth

with Mental and Emotional Disorders,” features a web-based intervention connecting youth with adult

mentors, employed in a variety of fields, who have experienced mental illness; (3) “Partnerships in

Individualized Planning” develops an intervention to increase youth and family member participation

in the individualized service planning process, a conceptual framework for understanding recovery in

children’s mental health, and ways to reduce stigma; (4) “Work-Life Integration” addresses CI for adult

caregivers of children and youth with emotional disorders, specifically around maintaining employment. It is designed to influence human resource professionals’ practice, and aims to reduce stigma and

increase organizations’ family friendliness; (5) “Transforming Transitions to Kindergarten” focuses on

the preschool-kindergarten transition for young children with challenging behaviors. It develops and

tests an intervention promoting children’s successful school entry while empowering caregivers; (6)

“Practice-Based Evidence: Building Effectiveness from the Ground Up,” conducts a case study in

partnership with a Native American youth organization and the National Indian Child Welfare Association, and addresses the need to study practices that are believed to be helpful, but for which little

evidence exists.
4-14 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Pennsylvania

Rehabilitation Research and Training Center Promoting Community

Integration of Individuals with Psychiatric Disabilities

University of Pennsylvania

Collaborative on Community Integration

3535 Market Street, 3rd Floor - CMHPSR

Philadelphia, PA 19104

pennrrtc@mail.med.upenn.edu

http://www.upennrrtc.org

Principal Investigator: Mark Salzer, PhD

Public Contact: Katy Kaplan 215/746-6713; Fax: 215/349-8715

Project Number: H133B031109

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $749,212; FY 04 $749,816; FY 05 $749,803

Abstract: The goal of this Center is to insure that people with psychiatric disabilities not only move

from institutional care to more integrated settings but also are free to choose to participate in a wide

range of roles in their communities. The Center’s five year mission focuses on three core areas: (1)

Factors Associated with Community Integration develops a coherent conceptual framework for community integration and identifies key factors, intervention models, and appropriate instrumentation and

research methodologies; (2) Policies Associated with Community Integration identifies, develops, and

assesses the effectiveness of a range of public policies and system strategies promoting community

integration and engage key stakeholders in learning about and utilizing the Center’s findings; and (3)

Intervention Supports that Assist Community Integration identifies, develops, and assesses the effectiveness of support service interventions promoting community integration, and provides training,

technical assistance, and dissemination based on those initiatives to change behaviors and practices of

key stakeholders. This Center capitalizes upon the longstanding history of collaboration among three

Philadelphia-based central partners: The University of Pennsylvania, the peer-operated Mental Health

Association of Southeastern Pennsylvania, and The Matrix Center at Horizon House, Inc.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-15

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Texas

Rehabilitation and Training Center on Community Integration in

Persons With TBI

The Institute for Rehabilitation and Research (TIRR)

Brain Injury Research Center

2455 South Braeswood

Houston, TX 77030

asander@bcm.tmc.edu; struchen@bcm.tmc.edu

http://www.tbicommunity.org

Principal Investigator: Angelle M. Sander, PhD; Margaret Struchen, PhD

Public Contact: 713/383-5644 (Sander); 713/383-5645 (Struchen)

Project Number: H133B031117

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $799,960; FY 04 $799,968; FY 05 $799,936

Abstract: The research program of this project includes: development and evaluation of a social

network mentoring program; an investigation of racial/ethnic differences in acceptance of disability,

community integration needs, barriers, and supports; a distance learning program to train family members in rural areas as paraprofessionals; assessment of employers’ attitudes toward persons with TBI

and a pilot educational intervention to reduce attitudinal barriers in the workplace; a randomized

clinical trial to assess the effectiveness of a brief substance abuse intervention; a qualitative exploration

of intimacy following TBI; and a study investigating the role of social communication abilities and

environmental factors on social integration. Training projects include: a National Information, Educational Resources, Dissemination, and Technical Assistance Center for the Community Integration of

Individuals With TBI; development of educational materials for increasing community awareness of

TBI and reducing attitudinal barriers; adoption of a social action network program from disability

studies for improving positive identity; partnering with artists in the community to implement a Center

for Creative Expressions for persons with TBI; training of community healthcare professionals in the

community integration needs of persons with TBI; a rehabilitation fellowship in community integration

of persons with TBI; and a state-of-the-science conference and book on community integration.
4-16 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Iowa

Asset Accumulation And Tax Policy Project

University of Iowa College of Law

Law, Health Policy, and Disability Center

100 Gilmore Hall

Iowa City, IA 52242

peter-blanck@uiowa.edu

http://www.its.uiowa.edu/law/lhpdc/rrtc/index.html

Principal Investigator: Peter D. Blanck, PhD, JD 319/335-9043

Public Contact: Michael Morris, JD; James Schmeling, JD 319/335-9043; 202/521-2930 (Morris);

319/335-8458 (Schmeling); Fax: 319/335-9764

Project Number: H133A031732

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 03 $299,991; FY 04 $299,991; FY 05 $299,991

Abstract: This project develops and disseminates a new and comprehensive body of knowledge to

multiple target audiences nationwide to improve the economic independence, social empowerment,

and community integration of persons with disabilities. Researchers examine systematically the relationship between tax policy and asset accumulation for persons with disabilities, and resultant improvements in economic and community integration. The project investigates the impact of multiple intervention strategies—including financial education, matched savings accounts, expanded financial

services, and increased use of state and Federal tax incentives for asset and community economic

development—in six states and ten pilot demonstration sites nationwide on youth in transition and

adults with disabilities. This project is a collaborative effort of The Law, Health Policy, and Disability

Center at the University of Iowa College of Law, Southern New Hampshire University School of

Community Economic Development, the National Federation of Community Development Credit

Unions, the World Institute on Disability, and the National Cooperative Bank Development Corporation.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-17

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Kansas

The Impact of Interventions on Self-Determination and Adult

Outcomes

University of Kansas

Kansas University Center on Developmental Disabilities

Beach Center on Disability

1200 Sunnyside Avenue, Room 3136

Lawrence, KS 66045-7534

wehmeyer@ku.edu

http://www.beachcenter.org

Principal Investigator: Michael Wehmeyer, PhD (University of Kansas); Laurie Powers, PhD

(Oregon Health Sciences University) 785/864-7605

Public Contact: 785/864-0723; Fax: 785/864-3458

Project Number: H133A031727

Start Date: October 01, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $299,313; FY 04 $299,967; FY 05 $299,616

Abstract: This project conducts three semi-longitudinal, national studies examining the impact of

interventions to promote the self-determination of students with high incidence and low incidence

disabilities, and students who are at-risk for less desirable adult outcomes on student self-determination,

adult outcomes, and quality of life. In all three studies, participants receive instruction for several years

(with annual measurements) and adult outcomes are measured during the next two years, post-high

school. The first study focuses on students with learning disabilities, mild intellectual disabilities, and

emotional/behavioral disorders. The second study focuses on students with moderate to severe intellectual disabilities, multiple disabilities, and severe autism. The third study focuses on students with

disabilities from foster systems or juvenile justice system. For the school-based studies of students with

learning disabilities and mental retardation, participating school campuses are randomly assigned to

treatment conditions. An alternate treatment-control group design ensures that each site obtains training

in self-determination related supports, but one level of training does not involve direct instruction with

students. Research follow-up in the first and second years post-high school for all study participants

will yield information about the impact of services and instruction using self-determination and student

involvement during high school and in transition services on the study sample. This investigation will

provide a firm evidence base for student-directed learning and self-determination in school and community resource settings.
4-18 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Oregon

Identification and Reporting of Violence By People with Disabilities

Oregon Health and Science University

Center on Self-Determination

3608 Southeast Powell Building

Portland, OR 97202

powersl@ohsu.edu; mcneffe@ohsu.edu

http://selfdetermination.ohsu.org

Principal Investigator: Laurie Powers, PhD 503/232-9154, ext. 104

Public Contact: Elizabeth McNeff, MPA, MHA 503/232-9154, ext. 150; Fax: 503/232-6423

Project Number: H133A031724

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $300,000; FY 04 $300,000; FY 05 $300,000

Abstract: The purpose of this project is to reduce the prevalence of violence against people with

disabilities. People with disabilities are at substantially higher risk for violence, abuse, and criminal

victimization than the general population. The identification and reporting of violence typically involves individuals’ self-identifying as victims and accessing safety and reporting information and

resources, as well as the availability of sensitive and accessible reporting methods. The goal of this

project is to improve the identification, reporting, and response to violence against persons with disabilities living in the community by: (1) validating the efficacy of a culturally sensitive approach to

promote violence screening, safety behaviors, disclosure and reporting by women with disabilities; (2)

increasing knowledge of the extent to which current crime reporting methods incorporate disability

status and accommodation information, and the barriers faced by police jurisdictions across the nation

in documenting and facilitating crime reporting by persons with disabilities; and (3) identifying practices and policies that promotes and support violence disclosure and reporting by individuals with

disabilities.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-19

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Arizona

The Texas Trilingual Initiative: Providing Effective Communication for

Persons who are Deaf or Hard of Hearing and Hispanic

University of Arizona

National Center for Interpretation

MLB #67, Room 345

Tucson, AZ 85721

pgatto@email.arizona.edu

http://nci.arizona.edu

Principal Investigator: Roseann Gonzalez, PhD; Paul Gatto, CPhil

Public Contact: Paul Gatto, CPhil 520/621-3615; Fax: 520/624-8130

Project Number: H133G040115

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 04 $149,957; FY 05 $149,957

Abstract: The Texas Trilingual Initiative is an innovative and efficient Trilingual Interpreter Certification Program to address an under-recognized “trilingual” language barrier (ASL, English, and Spanish)

that affects deaf and hard of hearing Hispanics. This barrier presents access problems for deaf and hard

of hearing Hispanics, who may use only American Sign Language (ASL) but must communicate with

both English and Spanish speakers, often at the same time. This trilingual language barrier often affects

Hispanic deaf and hard of hearing children who learn ASL in school, but whose parents speak Spanish

and whose service providers speak English. Providing access to critical educational, health, legal, and

social services requires interpreters who can competently bridge these three differing cultures and

languages. This certification program—to be conducted in partnership with the Texas Department of

Assistive and Rehabilitative Services - Division for Deaf and Hard of Hearing Services—includes the

development, piloting, and validation of beginning and advanced level trilingual interpreting certification tests to assess interpreting capability from Spanish/English to ASL and ASL to Spanish/English.
4-20 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Occupational Therapy Evaluation and Training Module to Guide

Practice with Parents with Physical Disabilities

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

TLG@lookingglass.org

http://www.lookingglass.org

Principal Investigator: Megan Kirshbaum, PhD 510/848-1112

Public Contact: 800/644-2666 (V); 800/804-1616 (TTY); Fax: 510/848-4445

Project Number: H133G010054

Start Date: November 01, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000

Abstract: This project develops an evaluation tool and an evaluation training module that helps

occupational therapy students and clinicians in their work with parents with physical disabilities, a

currently underserved population. The training module, which consists of a clinical evaluation tool, a

manual, and a videotape, guides clinical reasoning and the ability to provide appropriate recommendations and options that take into consideration the baby care roles and adapted baby care equipment

needs of parents with physical disabilities who care for (or want to care for) their children. The training

module provides a guide to evaluation of baby care needs and intervention in a variety of settings.

Parents who have physical disabilities who also have children birth to age 3 inform production, piloting, and field-testing. Further, occupational therapy expertise is needed nationally regarding AT related

to parenting. This is especially true as regards evaluation of parents with disabilities whose capability is

being questioned, for example in custody, child protection, or adoption situations. This module paves

the way for more inclusion of occupational therapist expertise in these evaluation circumstances.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-21

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

California

Total Community Immersion Model for Postsecondary-Age Students

with Significant Disabilities: An Outcome-Based Approach to

Transition

San Francisco State University

Department of Special Education

1600 Holloway Avenue

San Francisco, CA 94132

ncerto@sfsu.edu

Principal Investigator: Nicholas Certo, PhD

Public Contact: 415/338-2503; Fax: 415/338-0566

Project Number: H133G020184

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000

Abstract: This project develops, implements, and evaluates a Total Community Immersion Model for

transitioning students who are 19 and 20 years old from several metropolitan school districts in San

Francisco Bay Area. The Oakland Unified School District, and other Bay Area School Districts in

collaboration with San Francisco State University, have spent the last three years establishing the

Transition Service Integration Model, which has produced a seamless transition to adulthood by

integrating services with adult service providers functioning as receiving agencies and the rehabilitation

and developmental disability systems at the point of transition. However, that model focuses exclusively on the needs of pending graduates, that is, 21-year-old students during their last year of school,

and could benefit from receiving students with well-developed preferences for community living and

employment. A new model, developed through this research, eliminates the use of a fixed school site

and develops initial work and non-work activities that facilitate inclusion into each individual’s neighborhood, as well as other communities in Oakland and the metropolitan Bay Area.
4-22 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Florida

RAICES/Promotoras

University of South Florida

Louis de la Parte Florida Mental Health Institute

13301 Bruce B. Downs Avenue

Tampa, FL 33612

callejas@fmhi.usf.edu

http://cfs.fmhi.usf.edu/cfsnews/2003news/RAICES.htm

Principal Investigator: Mario Hernandez, PhD 813/974-4651

Public Contact: Linda M. Callejas 813/974-4651; Fax: 813/974-7563

Project Number: H133G030014

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $149,992; FY 04 $149,948; FY 05 $149,992

Abstract: RAICES/Promotoras develops and tests a method of service provision that integrates a

model known as Promotoras with a locally funded school-linked case management approach known as

the Family and School Support Team (FASST). FASST provides school and in-home services for

children and their families funded through the Children’s Board of Hillsborough County. The

RAICES project targets at-risk limited English speaking and Spanish monolingual Latino children or

those with serious emotional disturbance enrolled in grades K-5 and their families in rural south

Hillsborough County, Florida. The project also targets service providers and school personnel that

serve Latino families. “Raices,” or “roots,” symbolizes building healthy school and family ties upon

the foundations present within the family and community. Promotoras, or community educators, are

community members who use their knowledge of local resources and their neighborhood’s health and

social issues to promote healthy living and help community residents access needed health and social

services. Case management programs such as FASST face challenges in identifying, mobilizing, and

sustaining informal resources to support families. The Promotoras model offers a vehicle to make

needed modification of local services through development of more culturally competent methods for

linking and engaging Latino families with FASST and schools.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-23

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

University of Illinois at Chicago Mental Health Services Research

Program Medication Adherence Program Study (UIC-MAPS)

University of Illinois at Chicago

104 South Michigan Avenue, Suite 900

Chicago, IL 60603-5902

razzano@psych.uic.edu

http://www.psych.uic.edu/mhsrp

Principal Investigator: Lisa A. Razzano, PhD

Public Contact: 312/422-8180, ext. 20; Fax: 312/422-0740

Project Number: H133G010093

Start Date: September 01, 2001

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000; FY 04 $0 (No-cost extension

through 8/31/2005)

Abstract: This project examines the effects of a multifaceted curriculum designed to improve adherence to medication and treatment regimens, explore attitudes regarding physical health and treatment

planning, and improve the ability of participants to return to work. The UIC-MAPS intervention

comprises several components, including: (1) developing an educational workshop consisting of three

one-hour modules regarding health information, use of anti-retroviral medications, treatment planning,

maintaining health, detecting early symptoms of illness progression, and other topics; (2) developing

individualized medication plans; (3) meeting with clients and their identified sources of social support

to address medication and services issues; and (4) hosting monthly peer-led support groups on medication adherence, attitudes toward health and medication regimens, and issues related to health, wellbeing, and quality of life. The project includes a comprehensive evaluation designed to make significant contributions to the state-of-the-science literature regarding employment and adherence among

people living with HIV/AIDS. In addition, information from peer support group leaders regarding their

role(s) in working with other individuals living with HIV/AIDS is examined. The Mental Health

Services Research Program at the University of Illinois at Chicago is collaborating with Chicago

House, a community-based HIV/AIDS services organization on this project.
4-24 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Moving Out of the Nursing Home and to the Community: Examining

and Effecting Social Change

University of Illinois at Chicago

Department of Occupational Therapy

Department of Disability and Human Development

1919 West Taylor, M/C 811

Chicago, IL 60612-7250

hammel@uic.edu

http://www.uic.edu/ahs/OT/research.htm

Principal Investigator: Joy Hammel

Public Contact: 312/996-3513; Fax: 312/413-0256

Project Number: H133G010033

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $149,989; FY 02 $149,993; FY 03 $149,981; FY 04 $0 (No-cost extension

through 9/30/2005)

Abstract: This project develops, evaluates, and disseminates a social action and networking program

with people with disabilities who are transitioning from nursing homes to communities of their choice.

The majority of community reintegration program research has focused on individual functional skill

development as delivered by professionals. This new social action program, based on disability studies

research and disability narratives, targets four major unmet needs for: (1) sustained networking with

peers, mentors, and activists who have disabilities who can share experiences and strategies; (2) joining

meaningful social reference groups, especially those in which disability identity, pride, community

membership, and collective activism are valued and modeled; (3) using information technologies, such

as computers and the Internet, to gain knowledge, socialize, and network with identified communities

of choice; and (4) gaining access to consultative services and resources to access these technologies

and the community environment over time. The project uses a participatory action research collaboration approach to create and research the impact of this social action program on long-term community

living, participation, quality of life, social networking, and individual and collective identity development processes and outcomes. The project involves a collaborative partnership to effect social change

among two Centers for Independent Living, two departments within the Joint Doctoral Program in

Disability Studies at the University of Illinois/Chicago (UIC), the Center on Disability Research at

UIC, and state agencies and disability organizations involved in community reintegration and resource

allocation to support community living.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-25

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Integration at Home: Strengthening Family Relationships of Adults

with Disabilities

University of Illinois at Chicago

1640 West Roosevelt Road, M/C 626 Room 236

Chicago, IL 60608-6904

cg16@uic.edu

Principal Investigator: Carol J. Gill, PhD

Public Contact: 312/355-0550 (V); 312/996-4664 (TTY); Fax: 312/996-7743

Project Number: H133G020146

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $149,957; FY 03 $149,976; FY 04 $149,990

Abstract: This study investigates the family relationship issues of adults with physical or mobility

disabilities and adults with chronic fatigue syndrome. Phase I involves focus group interviews with

adults with disabilities for an open exploration of family relationship issues. Phase II involves in-depth

case studies of families experiencing disability who exemplify positive family integration. Phase III

involves a randomized control group study to test the impact of a family “intervention” based on the

social model of disability.
4-26 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Enabling Self-Determination for People Living with AIDS

University of Illinois at Chicago

Department of Occupational Therapy

M/C 811, 1919 West Taylor Street

Chicago, IL 60612

kielhfnr@uic.edu

Principal Investigator: Gary Kielhofner, PhD; Brent Braveman, PhD 312/996-4973 (Keilhofner);

312/355-2656 (Braveman)

Public Contact: Fax: 312/413-0256

Project Number: H133G020217

Start Date: January 01, 2003

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $149,032; FY 03 $149,337; FY 04 $149,764

Abstract: This project implements and studies a model program of peer-facilitated, empowermentoriented services for people with AIDS within five supportive living facilities. The facility-based

program provides individualized and group services that are tailored to each client’s needs and provides clients with necessary environmental supports. The program also empowers clients to access

additional resources and services that support their self-determination. This model program, Enabling

Self-Determination, is initially offered to clients in three supportive living facilities. Researchers study:

(1) the independent living, employment, and community participation outcomes of the model program,

and (2) the three facilities’ efforts to sustain the program. This condition is compared to a control group

comprised of individuals from two other facilities who receive basic educational services. Participatory

research methods are used to identify potential obstacles and solutions to program implementation and

efficacy, and to evaluate how the services impact upon and are viewed by the clients. Researchers

work closely with the two control group facilities to build their capacity to implement the model

program. In this way, the five transitional living facilities in Chicago that serve persons with AIDS are

empowered to sustain the Enabling Self-Determination program. Finally, the project creates extensive

resources for program replication and vigorously disseminates the model program so that communitybased supportive living facilities can replicate the program nationwide.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-27

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Homeless Mentally Ill: Strategies for Maintaining Residential Stability

University of Illinois at Chicago

Department of Occupational Therapy

1919 West Taylor Street, M/C 811

Chicago, IL 60612-7250

helfrich@uic.edu

Principal Investigator: Christine Helfrich, PhD 312/996-0942

Public Contact: 312/996-4626; Fax: 312/413-0256

Project Number: H133G040320

Start Date: December 01, 2004

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 04 $149,976; FY 05 $149,994

Abstract: This project implements, evaluates, and disseminates a life skills intervention to increase

skills necessary for maintaining housing for 230 homeless adults with psychiatric disabilities to prevent

their return to the streets, reinstitutionalization, hospitalization, or jail. These skills include room and

self care management, food management, financial management, and safe community participation.

This three-year project is conducted in two housing programs: supervised emergency housing and

single room occupancy housing with case management. The intervention was developed based on

Empowerment Theory, the Transtheoretical Model of Change, Social Learning Theory using a skills

training approach, and the Model of Human Occupation. The objective of this intervention is to

increase the time an individual remains housed and decrease the evictions that occur secondary to his/

her inability to perform the skills and behaviors necessary to maintain housing.
4-28 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Indiana

Integrating Assertive Community Treatment (ACT) and Illness

Management and Recovery (IMR) for Clients with Severe Mental

Illness (SMI)

Indiana University Purdue University Indianapolis (IUPUI)

Department of Psychology/ACT Center

402 North Blackford Street, LD 124

Indianapolis, IN 46202

mpsalyer@iupui.edu

http://psych.iupui.edu/ACTCenter

Principal Investigator: Michelle P. Salyers, PhD

Public Contact: 317/274-2904; Fax: 317/274-6756

Project Number: H133G030106

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $149,458; FY 04 $149,559; FY 05 $149,900

Abstract: This project targets the subgroup of 20 percent of consumers with severe mental illness

identified with the most severe disabilities, that is, the subgroup most often excluded from rehabilitation

services and mental health treatment. The project involves: (1) the systematic integration and highfidelity implementation of two evidence-based practices for consumers with severe mental illness:

assertive community treatment and illness management and recovery; (2) enhancing integration by

employing a consumer specialist on treatment teams in a well-defined role; and (3) providing the first

empirical test of a comprehensive package of techniques designed to help consumers learn to manage

their own illness and foster recovery. Outcome measures include achievement of recovery goals, such

as competitive employment and independent living, as well as indicators of illness management, such

as prevention of hospitalization.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-29

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Kansas

Independent Living for People with Psychiatric Disabilities: Using

Contextual Cues to Remove Environmental Barriers

University of Kansas Medical Center

Occupational Therapy Education

3033 Robinson Building

3901 Rainbow Boulevard

Kansas City, KS 66160-7602

tbrown@kumc.edu

http://www2.kumc.edu/pdrp

Principal Investigator: Catana Brown, PhD

Public Contact: 913/588-7195; Fax: 913/588-4568

Project Number: H133G000152

Start Date: August 01, 2000

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 00 $148,765; FY 01 $136,107; FY 02 $148,672; FY 03 $0 (No-cost extension

through 4/30/2004); FY 04 $0 (No-cost extension through 4/30/2005)

Abstract: This project examines an intervention that reduces environmental barriers by teaching

contextual cues. The grocery store, an exemplar of a complex community-based environment, is the

focus, and grocery shopping is the designated skill. The hypotheses tests the effectiveness of the

intervention in improving knowledge, performance, and application of grocery shopping skills, and the

relationship of cognition to skill acquisition. Individuals with psychiatric disabilities from five community-based sites are randomly assigned to either the grocery shopping intervention or a wait-list control

group. Outcome measures address all levels of skill acquisition: knowledge, performance (including

generalizability and maintenance), and application of grocery shopping skills. In addition, measures of

basic cognitive processes and executive functioning determine whether cognition predicts skill acquisition. Consumer collaborators are included in all aspects of the program. The findings provide direction

for enhancing this and other skills training interventions.
4-30 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Louisiana

Louisiana Community Housing Advocacy Network (LA-CHAN)

Louisiana State University

Health Science Center

LSU HSC-HCD #119

1100 Florida Avenue

New Orleans, LA 70119

nrober@lsuhsc.edu

http://www.hdc.lsuhsc.edu

Principal Investigator: Philip Wilson, PhD 504/942-8240

Public Contact: Nancy Robertson 504/942-7898; Fax: 504/942-5908

Project Number: H133G020211

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000

Abstract: The goal of this project is to establish community Housing Advocacy Networks in several

areas in Louisiana. The purpose of the advocacy networks is to provide a foundation for collaboration

among persons with disabilities, disability service providers, and housing professionals that will: (1)

develop local housing policies that are responsive to the housing needs of persons with disabilities, (2)

ensure communities access all available national housing resources for persons with disabilities, and (3)

establish local programs and service that meet the unique housing needs of persons with disabilities.

Anticipated project outcomes include: (1) increased availability of mainstream housing vouchers, (2)

increased participation of persons with disabilities in the local Consolidated Planning Process, and (3)

the successful transition of individuals from restrictive residential settings to community-based housing

options. This project also recruits, hires, and trains individuals with significant disabilities to serve as

housing advocates and play an integral role in ensuring individuals with disabilities are active participants in the networks.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-31

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Stress and Coping over the Life Course: A Perspective on Women with

Spinal Cord Injury

University of Michigan

Physical Medicine and Rehabilitation

Rehabilitation Psychology

325 East Eisenhower Parkway Suite 100

Ann Arbor, MI 48108

dgtate@umich.edu

http://www.med.umich.edu/pmr

Principal Investigator: Denise G. Tate, PhD

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133G020060

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $149,995; FY 03 $149,999; FY 04 $149,997

Abstract: This investigation describes the challenges to independent living faced by women with SCI

and the strategies they use to manage the stresses of everyday life. The ratio of men to women who

sustain SCI is approximately four to one, with current national prevalence of women estimated to be

36,900. Much of the research on SCI has focused on men and may not reflect the experiences of

women with SCI. Even more than their male counterparts, women with SCI endure multiple minority

status, poverty, lack of education, job discrimination, and restricted choices, and are often burdened by

extra care-taking responsibilities, all of which may elevate their risk for stress-related disorders. This

study: (1) documents, from a contextual life perspective, the ways women with SCI perceive and

respond to stressful life events; (2) explores, in depth, effective and ineffective ways of coping; and (3)

assesses the impact these strategies have on quality of life.
4-32 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Michigan

Community Participation After Spinal Cord Injury: Idioms of Beliefs

and Behaviors

Wayne State University

Institute of Gerontology

87 East Ferry Street

Knapp Building, Room 231

Detroit, MI 48202

c.lysack@wayne.edu

Principal Investigator: Catherine Lysack, PhD

Public Contact: 313/577-2297; Fax: 313/875-0127

Project Number: H133G020151

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 02 $149,959; FY 03 $149,974; FY 04 $149,539

Abstract: This study identifies and describes the self-defined forms of community and the modes of

community participation found meaningful to persons living with SCI. The five specific aims are to:

(1) discover and describe the self-defined forms of community that people with SCI envision and

pursue in daily life; (2) identify and describe the cultural and individual idioms of beliefs and behaviors

by which people with SCI create a sense of identification and participate in personally valued communities; (3) identify the barriers to participation in desired communities, and strategies and techniques (if

any) that persons with SCI use to overcome these barriers; (4) compare and contrast persons in two

groups (new onset SCI and more longstanding duration) in terms of the forms of community, idioms of

identification, and strategies used to overcome barriers and achieve meaningful community participation; and (5) evaluate preliminary qualitative hypotheses about the nature and modes of community

participation actually envisioned by persons with SCI themselves.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-33

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Minnesota

National Study on the Impact of SSI Redetermination of 18-Year-Old

Youth with Disabilities on Employment, Independent Living, and

Community Participation Outcomes

University of Minnesota

Institute on Community Integration

102 Pattee Hall

150 Pillsbury Drive SE

Minneapolis, MN 55455-0223

johns006@umn.edu

Principal Investigator: David R. Johnson, PhD 612/624-1062

Public Contact: Jane Fields 612/625-0350; Fax: 612/624-9344

Project Number: H133G000201

Start Date: October 01, 2000

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $149,988; FY 01 $149,946; FY 02 $149,955; FY 04 $0 (No-cost extension

through 3/31/2005)

Abstract: This project performs three specific types of studies and analyses on the impact of Supplemental Security Income (SSI) redetermination: (1) individual and family case studies: in-depth case

studies in three or four states, to understand better the impact of SSI redetermination policies and

practices on individuals and families; (2) research integration/synthesis: previous post-school outcome,

policy, and service delivery research studies and reports focusing on Social Security Administration

(SSA) policies and practices, reviewed, synthesized, and reported in a comprehensive monograph; and

(3) an expert panel/best practices review: “promising” or “best” practices related to SSA’s SSI redetermination policies and practices, identified and reviewed.
4-34 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Minnesota

National Training Institute for Frontline Supervisors (NTIFF)

University of Minnesota

Institute on Community Integration

214B Pattee Hall, 150 Pillsbury Drive, SE

Minneapolis, MN 55455

larso072@umn.edu

http://rtc.umn.edu/ntiffs/main/index.asp

Principal Investigator: Sheryl Larson, PhD 612/624-6024

Public Contact: Nancy McCulloh 612/626-7765; Fax: 612/625-6619

Project Number: H133G030058

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: This project refines, tests, and delivers a national train-the-trainer and technical assistance

model to assist community organizations that provide supports and services to persons with developmental and other severe disabilities to recruit, retain, and train direct support and frontline supervisor

staff members. The model includes: (1) assisting organizations to assess their recruitment and retention

challenges; (2) providing web-based training on recruitment and retention strategies; (3) conducting 2

intensive train the trainer institutes for 10-15 organization representatives; (4) supporting organizational

representatives to provide training to 70-100 frontline supervisors; (5) providing on-site as well as

remote technical assistance support and training to organizational representatives; (6) supporting

technical assistance efforts by organizational representatives for frontline supervisors; (7) supporting

ongoing follow-up measurement to assess the effectiveness of interventions and to guide future intervention work; and (8) developing project products and reports to share the project outcomes with

policy makers, provider organizations, and other interested persons.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-35

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Missouri

PeerLink: Empowering Persons with Disabilities to Manage Their Own

Information

University of Missouri

Department of Health Psychology, DC046.46

1 Hospital Drive

Columbia, MO 65211

schoppl@health.missouri.edu

http://www.telerehab.net

Principal Investigator: Laura Schopp, PhD

Public Contact: 573/882-8847; Fax: 573/884-4540

Project Number: H133G020065

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: William V. Schutz, PhD, MSW, MPH

NIDRR Funding: FY 02 $145,379; FY 03 $145,911; FY 04 $146,099

Abstract: This project develops an information management system that allows users to share personal

and local community resource information instantaneously and selectively, according to their own

specifications. The PeerLink team provides expertise in disability issues, informatics, and adaptive

computing. PeerLink creates information innovation in three major goal areas: (1) peer-to-peer inspired

information transfer model: developing, seeding, and implementing a highly disseminated, agile

information system to promote effective service integration by enabling efficient consumer-directed

information transfer; (2) knowledge management: converting implicit local resource information held

by knowledgeable community members with disabilities in order to make vetted information more

broadly available to other community members when and where they need it; and (3) graphic representation: capitalizing on an existing information dissemination user interface to allow access to geographically-based visualization of data for local disability resources.
4-36 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Evaluating Independent Living Outcomes for Blind and Visually

Impaired Older People: Development of a Nationally Standardized

Minimum Dataset (NSMD)

American Foundation for the Blind

11 Penn Plaza, Suite 300

New York, NY 10001

corinne@afb.net

http://www.afb.org

Principal Investigator: Corinne Kirchner, PhD; Alberta L. Orr, MSW

Public Contact: 212/502-7640; Fax: 212/502-7773

Project Number: H133G010183

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000; FY 04 $0 (No-cost extension

through 9/30/2005)

Abstract: This project develops and pilot tests a Nationally Standardized Minimum Dataset (NSMD),

through which research can be conducted on the outcomes of services for older persons with visual

impairments. This population has traditionally been underserved by public programs including the VR

system and the aging network. The NSMD is piloted in several agencies throughout the country and

includes: (1) pre-service consumer data, (2) a post-service consumer profile, (3) a functional outcomes

assessment, and (4) a consumer satisfaction and perceived outcome survey. Public agency administrators and staff are the primary audience. Secondary target audiences are private agencies for the blind,

centers for independent living, and consumers.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-37

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

A Longitudinal Study of Psychosocial Outcomes and Subjective Quality

of Life Many Years After Traumatic Brain Injury

Mount Sinai School of Medicine

Department of Physical Medicine and Rehabilitation

One Gustave Levy Place, Box 1240

New York, NY 10029-6574

marcel.dijkers@mssm.edu

Principal Investigator: Marcel Dijkers, PhD

Public Contact: 212/659-8587; Fax: 212/348-5901

Project Number: H133G030026

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $149,999; FY 04 $149,999; FY 05 $149,999

Abstract: This project is a longitudinal study of individuals with TBI who are on average 18 years

post-injury. Between 1994 and 1997, the Research and Training Center on the Community Integration

of Individuals with TBI at Mount Sinai School of Medicine conducted extensive quality of life and

health interviews with over 800 individuals with TBI, spinal cord injury (SCI) and no disability (NO).

The researchers for the current project will re-interview these same individuals eight to nine years after

their initial interview, using most of the original measures. This project has three main objectives: (1) to

document long-term psychosocial functioning post-TBI and its change over time; (2) to examine

longitudinally subjective quality of life post-TBI as a primary indicator of adjustment to TBI; (3) to

determine the predictors of change in subjective quality of life. The comparison groups provide a

means of examining whether the changes observed in individuals with TBI reflect the unique experience of living with a TBI, the broader experience of living with a disability (comparison with the SCI

group), or the general challenges we all face in conducting our daily lives (comparison with the NO

group). Results of the study are disseminated through public conferences for both professionals and

consumers, through publications in journals for consumers and professionals, and through the development of reports specifically targeted to individuals with TBI.
4-38 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Getting A Life: Research on Individual and Person-Centered Planning

Processes in Oregon

University of Oregon

Educational and Community Supports

1235 University of Oregon

Eugene, OR 97403-1235

ralbin@oregon.uoregon.edu

http://www.uoecs.org/grants/ECSprojects.htm

Principal Investigator: Richard Albin, PhD

Public Contact: 541/346-2464; Fax: 541/346-5517

Project Number: H133G010167

Start Date: October 01, 2001

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 01 $149,999; FY 02 $149,999; FY 03 $149,997; FY 04 $0 (No-cost extension

through 9/30/2005)

Abstract: This project researches the relative merits of forms of Person-Centered Planning (PCP),

including the Individualized Support or Service Plan (ISP) system, Essential Lifestyle Planning (ELP),

and others. Activities include the following three studies: (1) surveying the features of individual

planning systems used in Oregon at the start of the project and in Year 3 after large scale systems

change efforts have occurred; (2) creating a causal-comparative 3-by-2 factorial group design, where

study participants are assigned to groups based on whether they are experiencing a defined set of

significant life challenges and the types of service planning they receive, with groups balanced or

blocked based on demographic variables; and (3) creating a multiple-baseline single subject design in

which the outcomes of three service planning approaches (ISPs, ELPs, and PCP) are compared related

to specific outcomes for six individuals who experience challenging behavior.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-39

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Resilience in Students with TBI: A Longitudinal Investigation

Western Oregon University

Teaching Research Division

99 West 10th Avenue, Suite 370

Eugene, OR 97401

anng@oregon.uoregon.edu

Principal Investigator: Ann E. Glang, PhD

Public Contact: 541/346-0594; Fax: 541/346-0599

Project Number: H133G030179

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 03 $149,950; FY 04 $149,999; FY 05 $149,966

Abstract: The project extends the work of Project PSO, a project investigating post-secondary outcomes for young adults with TBI, tracking this sample into their early 20’s, a time when the subjects

are making significant life adjustments in the areas of post-secondary education, employment, independent living, and interpersonal relationships. The Project’s quantitative and qualitative data reveal that

some of the 92 subjects appear to be resilient, achieving successful post-injury adjustments, while

others are experiencing difficulty, becoming dependent on family members for instrumental and social

support. The data suggest that access to specific types of educational interventions and support services

account for these differences in adjustment. In addition, this project investigates factors that facilitate

and impede delivery of services and support to young adults with TBI from key agencies, including

VR, Social Security Administration, and state social service agencies serving individuals disabilities.
4-40 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Community Environmental Assessment Project: A Multi-Method

Approach to Identify Barriers, Assets, and Engage Communities for

Change

Oregon Health and Science University

P.O. Box 574

Portland, OR 97207-0574

drumc@ohsu.edu

http://cdrc.ohsu.edu/oodh

Principal Investigator: Charles Drum, JD, PhD 503/494-8047

Public Contact: Amber Roberts 503/494-3331; Fax: 503/494-6868

Project Number: H133G020125

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Unknown

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000

Abstract: This project develops a multi-method approach to measure a community’s level of accessibility. The project measures accessibility of communities through a process of community engagement

and use of extant data. Effectively measuring community accessibility through the explication and

depiction of extant data at the local level can provide the means for participatory social change at low

cost, using available resources. The project’s major objectives and activities include: (1) identifying

access issues in different communities through a call-back survey of people with disabilities, summarizing results by type and location of community; (2) engaging community members through a community engagement methodology to identify local needs and resources and measurable indicators of

barriers and facilitators; (3) developing community profiles based on measurable indicators (including

statistical data and maps with geographic information systems); (4) evaluating community access at the

local community level by reviewing all data and maps to address future plans, policies, or interventions

to improve access with disability experts, community leaders, service and government agencies, and

planners; and (5) developing and disseminating a handbook that summarizes the multi-method approach. The project summarizes procedures and findings and disseminates them nationally.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-41

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Oregon

Healthy Lifestyles Evaluation Project

Oregon Health and Science University

P.O. Box 574

Portland, OR 97207-0574

drumc@ohsu.edu

http://cdrc.ohsu.edu/oodh

Principal Investigator: Charles Drum, JD, PhD 503/494-8047

Public Contact: 503/494-3331; Fax: 503/494-6868

Project Number: H133G020231

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Constance Pledger, EdD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000

Abstract: This project evaluates the effectiveness of the Healthy Lifestyles for People with Disabilities

training curriculum. To achieve this goal, the project: (1) conducts ten Healthy Lifestyles training

events for persons with disabilities through local Centers for Independent Living within the Portland

metropolitan area and statewide; (2) assesses the level of wellness and the healthy lifestyles attitudes,

knowledge, and skills of participants over the course of the project (before and after participating, and

over time, to evaluate the effectiveness of the curriculum in establishing and maintaining long-term

lifestyle changes); (3) assesses participants’ completion of lifestyle change goals; and (4) compares

participants’ wellness and healthy lifestyles attitudes, knowledge, and skills to that of controls.
4-42 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

Stability of Vocational Interests Two Years after Spinal Cord Injury:

Relationship with Employment, Participation, and Subjective WellBeing

Medical University of South Carolina

College of Health Professions

Department of Rehabilitation Sciences

Research Office

19 Hagood Ave, Suite 910; PO Box 250822

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-1107

Project Number: H133G030151

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Joyce Y. Caldwell

NIDRR Funding: FY 03 $149,944; FY 04 $149,913; FY 05 $149,352

Abstract: The primary objectives of this study are to identify how much interests change in the first

two years after SCI onset, factors related to change, and the extent to which interest type and interest

change are associated with employment, participation, and subjective well-being. Return to gainful

employment has been widely endorsed as fundamental rehabilitation goal after the onset of a SCI, yet

employment rates for people with SCI rarely exceed 30 percent. This high unemployment rate is

generally attributed to the dramatic impact of SCI on ability to perform job functions requiring physical

strength and dexterity. However, successful employment is related to both the extent to which the

individual is able to perform the needed job functions and the degree to which the job environment and

job tasks are intrinsically interesting to the individual. Unfortunately, research has shown that SCI often

occurs selectively to people whose interests are in physically challenging activities that may no longer

possible given the physical limitations imposed by SCI. The impact of no longer being able to perform

intrinsically rewarding activities not only poses a threat to successful return to work, but also to overall

participation in society and subjective well-being. By helping rehabilitation professionals to better

understand the relationships of both interest type and interest stability with employment, participation,

and well-being, this study lays a foundation for intervention strategies that maximize opportunities for

participation and help people with SCI to lead fulfilling and rewarding lives.es:
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-43

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Depression and Rural Women with Disabilities: Testing a CIL-Based

Self-Management Program

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

Center for Research on Women with Disabilities

3440 Richmond Avenue, Suite B

Houston, TX 77046-3403

rhughes@bcm.tmc.edu

http://www.bcm.tmc.edu/crowd

Principal Investigator: Rosemary B. Hughes, PhD

Public Contact: 713/960-0505; Fax: 713/961-3555

Project Number: H133G030170

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: This project evaluates a depression self-management intervention for reducing and preventing depression in rural women with disabilities, implemented in ten rural centers for independent living

(CIL). Each of the ten CILs identifies two women with disabilities (one CIL staff counselor with a

disability and another woman with a physical disability) to serve as co-leaders for the intervention and

select a licensed mental health professional to intervene with crises and provide resources and referral

services as needed. Approximately 200 women are randomly assigned: 100 to the traditional CIL

services plus an 8-session self-management of depression intervention group, and 100 to the traditional

CIL services-only group. The intervention is designed to increase participants’ understanding and selfmanagement of depression as it relates to experiences of secondary and chronic health problems, stress,

lack of support, chronic pain, and abuse. The goals of this project are to (1) develop and implement a

depression self-management program for women with physical disabilities, including women with

newly recognized disabilities such as chronic fatigue immune deficiency syndrome and fibromyalgia:

and (2) disseminate the findings to rural women with disabilities, rural independent living counselors,

researchers, and mental health service providers.h:
4-44 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Texas

Caregiver and Environmental Influences on Outcome for Infants and

Preschoolers with Traumatic Brain Injury

University of Texas

Health Science Center at Houston

7000 Fannin, Suite 2401

Houston, TX 77030

Principal Investigator: Mary R. Prassad 713/500-3876

Project Number: H133G040279

Start Date: November 01, 2004

Length: 36 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 04 $149,225; FY 05 $149,970

Abstract: This project is guided by a transactional model of development which postulates that child’s

eventual outcome is a result of transactions between the child’s biological risk factors and a continuum

of environmental conditions. Project 1 assesses predictors of outcome in infants and preschoolers with

moderate or severe TBI who are 6 to 47 months of age in relation to socio-demographically matched

comparison children. Child behavior, caregiver stress, and family functioning are expected to have a

direct impact on outcome from TBI; however, the effect of brain injury on developmental outcomes is

also expected to be partially mediated through the influence of these factors on the caregiver-child

interaction. Project 2 pilots a randomized controlled home-based caregiver-focused intervention for

infants and preschoolers with TBI that enhances caregiver skills for stimulating cognitive development.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-45

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Washington

Multi-Family Group Intervention for Traumatic Brain Injury and

Spinal Cord Injury Patients and Families

Inland Northwest Health Service

105 West 8th Avenue, Suite 200

Spokane, WA 99204-2318

beckerb@st-lukes.org

Principal Investigator: Bruce Becker, MD

Public Contact: 509/473-6048; Fax: 509/473-6978

Project Number: H133G020006

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Richard E. Wilson II, EdD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000

Abstract: This project establishes two SCI and two TBI multi-family group (MFG) interventions to

support and teach families and patients about the disability process and management strategies. MFG is

a structured management strategy that has been extensively tested in the management of chronic

schizophrenia and more recently adapted for other chronic disabling conditions. This strategy brings

together groups of six to eight families with two MFG group clinician/facilitators in a psycho-educational problem-solving format, over a period of 18 months. Families are given the opportunity to

discover and share problems and solutions about the process of living with other families and patients

through the implementation of practical guidelines for effective coping. The intervention has been

highly effective in reducing relapse and hospitalizations, and improving symptom control and quality

of life, for persons with schizophrenia. This project compares TBI and SCI MFG groups for ease of

implementation, efficacy (process and outcome), and cost, adapting measures previously studied in

schizophrenia with those used in assessing family stress in SCI and TBI.
4-46 NIDRR Program Directory FY 2004 - Independent Living and Community Integration

Small Business Innovative Research (SBIR), Phase I Small Business Innovative Research (SBIR), Phase I

Colorado

Interactive CD ROM Technology for Home-Based Autism Intervention

Acanthus, Inc

1506 Buttonwood Drive

Fort Collins, CO 80525

jcjjones@aol.com; mjohnson@lamar.colostate.edu

Principal Investigator: Jan Jones

Public Contact: M.L. Johnson, PhD 970/495-0532; Fax: 970/495-0532

Project Number: H133S040124

Start Date: October 01, 2004

Length: 6 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 04 $75,000

Abstract: The long-term objective of this project is to produce a comprehensive set of research validated interactive CD ROM training packages that can be used by parents-as-teachers to foster independence of autistic individuals in school, community, and the workplace. The goals of Phase I are to

produce the first two interactive training packages and then field-test them for parent training efficacy.
NIDRR Program Directory FY 2004 - Independent Living and Community Integration 4-47

Small Business Innovative Research (SBIR), Phase II Small Business Innovative Research (SBIR), Phase II

Maryland

Development and Testing of LD/LEP Friendly Computer Textbooks in

Diverse Subjects, Classrooms, and Formats

Visibooks, LLC

10 Norva Avenue

Frederick, MD 21701

chris@visibooks.com

http://www.visibooks.com

Principal Investigator: Christopher Charuhas

Public Contact: 301/560-4611; Fax: 208/279-5336

Project Number: H133S030008

Start Date:þ: October 01, 2003

Length: 24 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $326,950; FY 04 $155,160

Abstract: This project determines if textbooks based on a Phase I prototype help students with learning disabilities and low-English-proficiency (LEP) learn computer subjects better, faster, and easier.

The study also determines if these textbooks are suitable for mainstream students, and if the books are

effective when used in electronic format. Twenty Phase I-type textbooks on common computer subjects are produced and distributed to high school, college, and adult education computer classes containing LD, LEP, and mainstream students. One group of classes uses bound copies, another uses

electronic copies, and a control group uses textbooks currently on the market. At the beginning of the

semester, students in each class take a pre-test to measure existing knowledge. At the end of the semester, they take a post-test to measure what they’ve learned. Test data from two semesters is used to

compare the progress of students in the bound, electronic, and current-book test groups.

Associated Disability Research Areas

Related disability research emphasizes knowledge areas that are cross-cutting and

essential to the support and refinement of disability research generally. The common

theme linking disability statistics, outcome measures, and the emerging fields of

disability studies, rehabilitation science, and disability policy research is that they all

provide essential frameworks and building blocks for the research and address

important issues in a meaningful way.

Contents

Rehabilitation Research and Training Centers (RRTCs) ............................................................................ 3

Disability and Rehabilitation Research Projects ........................................................................................ 7

Field Initiated Projects (FIPs) ................................................................................................................. 8

NIDRR Program Directory FY 2004 - Associated Disability Research Areas 5-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

Rehabilitation Research and Training Center on Measuring

Rehabilitation Outcomes and Effectiveness

Feinberg School of Medicine

Northwestern University

Center for Rehabilitation Outcomes Research

Rehabilitation Institute of Chicago

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

http://www.ric.org/research/outcomes/rrtc_projects.php

Principal Investigator: Allen W. Heinemann, PhD 312/238-2802

Public Contact: Trudy Mallinson, PhD 312/238-1623; Fax: 312/238-2383

Project Number: H133B040032

Start Date: December 01, 2004

Length: 60 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 04 $700,000; FY 05 $700,000

Abstract: The purpose of this RRTC is to provide national leadership on the functional assessment,

outcomes, and health policy issues facing the medical rehabilitation community and the diverse consumers it seeks to serve. The Center conducts research; hosts forums for discussion; publishes in the

rehabilitation, health policy, and consumer literature; trains researchers in rehabilitation-focused health

services research; and disseminates information to diverse consumer, provider, and academic audiences. The RRTC’s research seeks to (1) enable comparison of functional status measures across postacute settings so information can be provided to consumers and other rehabilitation stakeholders about

the outcomes and effectiveness of various post-acute care settings; (2) develop an innovative measure

of community participation in a meaningful, reliable, and valid manner in order to better describe the

long-term outcomes of rehabilitation services; (3) increase the efficiency of outcome data collection so

more resources can be directed to patient care; (4) examine how format and presentation style influences patient understanding of rehabilitation quality outcome indicators in order to provide information

in ways that are helpful for consumers when selecting rehabilitation services. The project uses recent

developments in item response theory and computer adaptive testing and stakeholder input in test

development, outcomes reporting and quality indicator reporting. The expected outcomes are a rational

basis for provision of rehabilitation services post-acute care settings, increased efficiency of data

collection, a better measure of community participation, and outcome reporting that is responsive to

stakeholder needs. Dissemination activities include post-graduate and post-doctoral training opportunities, conferences, and a website that provides information on measurement of rehabilitation outcomes

across the continuum of post-acute settings.
5-4 NIDRR Program Directory FY 2004 - Associated Disability Research Areas

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Kansas

Rehabilitation Research and Training Center on Policies Affecting

Families of Children with Disabilities

University of Kansas

Center for Research, Inc.

Beach Center on Disability

Haworth Hall, Room 3136; 1200 Sunnyside Avenue

Lawrence, KS 66045-7534

turnbull@ku.edu

http://www.beachcenter.org

Principal Investigator: H.R. Turnbull, LLM; Ann Turnbull, EdD

Public Contact: H. R. Turnbull, LLM 785/864-7600; Fax: 785/864-7605

Project Number: H133B031133

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $749,951; FY 04 $749,960; FY 05 $749,997

Abstract: This center conducts eight research projects on the effects of the policies of governments,

systems, networks, and agencies on the family quality of life and community integration (FQOL/FCI)

of families who have children with developmental disabilities and emotional-behavioral disabilities or

both. Researchers identify four target populations: families, providers, policy-leaders, and networks (all

at the federal, state, and local levels). Three policy challenges are prisms through which the effects of

policy on families can be understood: early intervention, alternative schools, and consumer control of

funding. For each policy challenge, researchers inquire into whether the applicable federal and state

policies and practices, and the applicable network policies, advance FQOL/FCI; whether the policies

across education, social services, and health care are mutually consistent with each other and advance

FQOL/FCI; and whether the practices of agencies in those systems advance FQOL/FCI. The center’s

analytical framework holds that the core concepts shape policies; policies shape services; policies and

services should be coordinated and delivered through partnerships; enhanced FQOL/FCI occurs when

there is coherence among core concepts, coordinated policies delivered through partnerships, and

coordinated services delivered through partnerships; and influencing factors must invariably be taken

into account.
NIDRR Program Directory FY 2004 - Associated Disability Research Areas 5-5

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Massachusetts

Rehabilitation Research and Training Center on Measuring

Rehabilitation Outcomes

Boston University

Sargent College of Health and Rehabilitation Sciences

635 Commonwealth Avenue

Boston, MA 02215

rmonarch@bu.edu

http://www.bu.edu/cre/rehaboutcomes

Principal Investigator: Alan M. Jette, PhD 617/353-2704

Public Contact: Roseanne Monarch 617/353-1297; 617/353-3277; Fax: 617/358-1355

Project Number: H133B990005

Start Date: September 01, 1999

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 99 $699,736; FY 00 $699,868; FY 01 $699,745; FY 02 $698,812; FY 03

$699,946; FY 04 $0 (No-cost extension through 2/28/2005)

Abstract: This Center develops new, more effective outcomes measurement tools and applies these

tools to determine the effectiveness of medical rehabilitation interventions. Research components

include: (1) identifying gaps in existing outcome measures and developing new instruments that

address these gaps as part of a rehabilitation outcomes system; (2) critically evaluating the newly

developed instruments against tools currently in use; (3) implementing the newly developed outcome

instruments across impairment groups and across rehabilitation settings to assess their feasibility,

responsiveness, and validity; (4) investigating the extent to which specific rehabilitation interventions

affect outcomes following the onset of a stroke; and (5) applying modern psychometric techniques to

develop dynamic outcome instruments that can also be used with individual patients in a clinical

setting. Several components have been designed to enhance the translation of research findings into

rehabilitation practice and to provide stakeholders with the opportunity to provide input into the Center

including surveys of the use of medical rehabilitation outcomes data, consensus conferences, institutes,

fellowships, a web site, and a consumer guide to choosing postacute care services.ha:
5-6 NIDRR Program Directory FY 2004 - Associated Disability Research Areas

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

New York

Rehabilitation Research and Training Center on Demographics and

Statistics

Cornell University

Ives Hall, Room 331

Ithaca, NY 14853

ajh29@cornell.edu

http://www.disabilitystatistics.org

Principal Investigator: Andrew J. Houtenville, PhD

Public Contact: 607/255-5702 (V); 607/255-2891 (TTY); Fax: 607/255-3274

Project Number: H133B031111

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $750,000; FY 04 $750,000; FY 05 $750,000

Abstract: The RRTC on Demographics and Statistics (Cornell StatsRRTC) bridges the divide between the sources of disability data and the users of disability statistics. The project conducts research

exploring the reliability of existing data sources and collection methods, and studies the potential to

improve current and future data collection efforts. In addition, the project utilizes existing data sources

to provide a comprehensive and reliable set of statistics, increase access to and understanding of how

statistics can be used effectively to support decision making. Cornell StatsRRTC works with key

organizations to determine their needs and helps them maximize the use of disability statistics in their

ongoing efforts to improve the lives of people with disabilities and their families. As members of the

Cornell StatsRRTC, the American Association of People with Disabilities, the Center for an Accessible Society, and InfoUse provide vital expertise and resources needed to reach the users of disability

data and statistics. The Cornell StatsRRTC includes researchers from Cornell University, Mathematica

Policy Research, the Urban Institute, and the Institute for Matching People and Technology, all of

which bring extensive expertise in working with and creating sources of disability data.
NIDRR Program Directory FY 2004 - Associated Disability Research Areas 5-7

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

Emergent Disability, Systems Change, and Employment of People with

Disabilities

University of Massachusetts

Institute for Community Inclusion

100 Morrissey Boulevard

Boston, MA 02115

susan.foley@umb.edu

http://www.communityinclusion.org

Principal Investigator: Susan Foley, PhD; Doris Hamner, PhD 617/287-4317 (Foley); 617/287-4364

(Hamner)

Public Contact: Susan Foley, PhD 617/287-4317; Fax: 617/287-4352

Project Number: H133A021503

Start Date: December 01, 2002

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $300,000; FY 03 $300,000; FY 04 $299,640; FY 05 $299,640

Abstract: This project examines state service systems to document the impact of federal policies and

practices on systems change and how such changes affect people with disabilities. Research activities

include: (1) analysis of national, state, and local data collection systems and actual employment outcomes for people with disabilities; (2) documentation of data sets being used by state agencies to

measure effectiveness and how these could be used to examine outcomes for people with disabilities;

and (3) examination of how people with disabilities fare within the existing system and challenges they

may face through direct consumer research. The goals of the project are: (1) to develop a clear description and presentation of how federal policies impact systems change efforts; (2) to identify how these

policies and practices affect the lives of people with disabilities; (3) to identify procedures for a more

integrated approach to gathering data that better explains the consumer outcomes of these services; and

(4) to document how people with disabilities progress within the service system.
5-8 NIDRR Program Directory FY 2004 - Associated Disability Research Areas

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Colorado

National Study Of Disability Finance

University of Colorado Health Sciences Center

4001 Discovery Dr., Suite 210

Boulder, CO 80303

braddock@cu.edu

Principal Investigator: David L. Braddock, PhD

Public Contact: 303/492-0639

Project Number: H133G030149

Start Date: December 01, 2003

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: The project is a unique and comprehensive longitudinal study of the financial and programmatic structure of public spending for disability in each state of the US and at the national level. The

study develops and maintains a state-by-state and national database on public spending for mental,

physical, and sensory disability during 1997-2004, and investigates the determinants of that spending.

The project includes a wide-ranging dissemination and technical assistance program on innovative

financing of disability programs in the US, based on the results of this research. The project also

includes a consortium of dissemination and technical assistance partnerships with five national organizations: the National Conference of State Legislatures, the 100-agency-member Washington DC-based

Consortium for Citizens with Disabilities, the National Council on Independent Living, the National

Alliance for the Mentally Ill, and the grassroots ADAPT organization (Americans Disabled for Attendant Programs Today).
NIDRR Program Directory FY 2004 - Associated Disability Research Areas 5-9

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

An Analysis of the Demography of Living Standards, Health, and

Poverty of Persons with a Disability Living in Third World Nations

Based on Data from the World Bank

University of Illinois at Chicago

1640 West Roosevelt Road

Chicago, IL 60608-7205

gfujiura@uic.edu

http://www.uic.edu/depts/idhd/ced

Principal Investigator: Glenn T. Fujiura, PhD

Public Contact: 312/413-1977; Fax: 312/413-4098

Project Number: H133G010139

Start Date: November 01, 2001

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000; FY 04 (No-cost extension

through 10/31/2005)

Abstract: This project analyzes World Bank economic development data in 24 developing nations of

the world. The goal of the analysis is to describe basic demographics and their relationship to the living

standards of persons with a disability. The overall goals of the project are to elevate awareness of

disability issues globally, to assist local advocacy efforts in raising awareness of disability as a basic

development issue, and to stimulate a dialogue regarding the international role in the evolving paradigm of disability. Primary areas of emphasis are: (1) characterization of employment, economic status,

and social well-being (i.e., access to health services, supports, assets); (2) estimation of the magnitude

of disablement within nations; (3) identification of subgroups within each nation that are most vulnerable to disablement; (4) analysis of the status of women with disabilities; (5) identification of unique

regional concerns; and (6) broad comparisons of the living standards in the developing world to those

of the U.S. The project employs systems initiated by the World Bank in 1980 called the Living Standards Measurement Survey (LSMS) project, which involves sophisticated population-based household

surveys on economic behavior and living standards in underdeveloped nations. This project is a

collaborative effort by the Department of Disability and Human Development at the University of

Illinois/Chicago and Disabled Peoples’ International. The project operationalizes the principles of

participatory action research by employing the expertise of regional representatives of the DPI, a

consumer-driven, cross-disability network with member organizations in more than 158 countries, of

which more than half are in the developing world.
5-10 NIDRR Program Directory FY 2004 - Associated Disability Research Areas

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Illinois

Differences in Mental Health Service Satisfaction Among Clients

Interviewed by Consumer and Non-Consumer Researchers Using

Computer-Assisted Personal Interview (CAPI) Technology

University of Illinois at Chicago

RRTC on Psychiatric Disability

104 South Michigan Avenue, Suite 900

Chicago, IL 60603

pickett@psych.uic.edu

http://www.psych.uic.edu/mhsrp/capi.htm

Principal Investigator: Susan Pickett-Schenk, PhD

Public Contact: 312/422-8180, ext. 17; Fax: 312/422-0740

Project Number: H133G020027

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000

Abstract: Tobetter understand mental health consumers’ evaluations of the services they receive, this

study compares differences in service satisfaction ratings made by clients interviewed by researchers

who are and are not mental health consumers. In a randomized design, 400 clients complete satisfaction surveys administered by mental health consumer researchers and 400 clients complete satisfaction

surveys administered by non-consumer researchers. Computer-assisted personal interview (CAPI)

technology is used to administer the satisfaction surveys. Study results provide important information

on clients’ satisfaction with community mental health programs, the effect of researchers’ consumer

status on program satisfaction ratings, and the use of CAPI technology in mental health program

evaluation.
NIDRR Program Directory FY 2004 - Associated Disability Research Areas 5-11

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Massachusetts

Rehabilitation Readiness Tool for Latinos with Psychiatric Disabilities

Boston University

Latino Initiatives at the Center for Psychiatric Rehabilitation

940 Commonwealth Avenue West

Boston, MA 02215

mertoro@bu.edu

http://www.bu.edu/cpr

Principal Investigator: Maria Restrepo-Toro, MS; Marianne Farkas, ScD

Public Contact: Maria Restrepo-Toro, MS 617/353-3549; Fax: 617/353-7700

Project Number: H133G020181

Start Date: September 01, 2002

Length: 36 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 02 $149,776; FY 03 $149,897; FY 04 $149,944

Abstract: This project develops a Rehabilitation Readiness Tool for Latino Consumers with Serious

Psychiatric Disabilities. Based on information gathered about the experience of Latino consumers with

psychiatric disabilities. This tool can be used by professionals and /or the person’s family or natural

support system to assess and develop the individual’s readiness for rehabilitation in an effective and

culturally appropriate way. To implement the project the Center for Psychiatric Rehabilitation at

Boston University is collaborating with Maria Sardinas Center (MSC) and South Bay Guidance

Center (SBGC), both programs of Community Research Foundation in San Diego, CA, and Center

House, Inc., and Casa Primavera, both programs of Bay Cove Human Services in Boston, MA. The

present proposal addresses several barriers related to Latino service underutilization, including a lack of

understanding of how to begin services in a way that matches the Latino clients’ needs (i.e., readiness

to engage) and the absence of accompanying readiness educational materials in Spanish. The tool

generated by this project allows rehabilitation professionals, family members, and /or other natural

supports to help Latinos engage more successfully in the rehabilitation process. This innovation helps

to provide a bridge between existing rehabilitation services and the potential Latino consumer.
5-12 NIDRR Program Directory FY 2004 - Associated Disability Research Areas

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

Minnesota

Secondary Analyses of Persons with Disabilities in the 1994-1995

Disability Supplement to the National Health Interview Survey and in

1999 and 2000 NHIS Surveys

University of Minnesota

Institute on Community Integration

214 B Pattee Hall

150 Pillsbury Drive Southeast

Minneapolis, MN 55455

larso072@umn.edu

http://rtc.umn.edu/nhis

Principal Investigator: Sheryl Larson, PhD; Charlie Lakin, PhD 612/624-6024 (Larson); 612/624-

5005 (Lakin)

Public Contact: 612/624-6024; Fax: 612/625-6619

Project Number: H133G020037

Start Date: August 01, 2002

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $135,670; FY 03 $140,139; FY 04 $140,349

Abstract: This project conducts and disseminates the results of focused secondary analyses of data on

persons with developmental and other disabilities within the 1994-1995 Disability Supplement to the

National Health Interview Survey (NHIS-D) and within 1999 and 2000 NHIS surveys. The combined

1994 and 1995 NHIS-D is the most comprehensive survey of non-institutionalized persons with

disabilities ever conducted in the United States and is the first national survey to include persons with

disabilities of all ages. The analyses focus on the 3,076 sample members with mental retardation (MR)

and/or developmental disabilities (DD), and on the 12,078 adults and 1,536 children who have one or

more substantial functional limitations but who do not have MR or DD. The analyses build on earlier

research using the NHIS-D in which operational definitions for mental retardation, developmental

disabilities, and functional limitations were developed and used for estimating prevalence, demographics, and service use of persons with MR and/or DD. Data analysis topics include: (1) demographic,

functional, and health characteristics; (2) in-home services and supports; (3) access to health care; (4)

services, devices, and technology; (5) households with parents who have disabilities; and (6) social

roles and experiences of adults. In each of these areas, four disability groups are examined: those with

mental retardation only, those with developmental disabilities only, those with mental retardation and

developmental disabilities, and those with substantial functional limitations but not mental retardation

or developmental disabilities. Of particular interest is the comparison between working-age adults with

developmental disabilities and those with three or more functional limitations whose disabilities first

occurred in adulthood.
NIDRR Program Directory FY 2004 - Associated Disability Research Areas 5-13

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Utilization and Analysis of Census 2000 Data to Inform Disability

Advocacy and Employment Policy

Cornell University

Program on Employment and Disability

Ithaca, NY 14853

ajh29@cornell.edu

http://www.disabilitystatistics.org

Principal Investigator: Andrew J. Houtenville, PhD

Public Contact: 607/255-5702 (V); 607/255-2891 (TTY); Fax: 607/255-3274

Project Number: H133G020117

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000

Abstract: This project analyzes and disseminates disability employment statistics gleaned from the

long-form dataset of the 2000 U.S. Census. A unique feature of the statistical summary is the disaggregation of data at the state and, if possible, county level. The project generates a “user friendly” report

and web site designed for advocacy groups and other end users of disability employment statistics. The

web site is designed in a “question-and-answer” format, based on a model currently employed by

Cornell’s RRTC for Economic Research on Employment Policy. The project also analyses and disseminates Public Use Microdata Sample files, which allow the summary and reporting of data at the

state and local level. Research also includes testing of statistical models purporting to describe the

“disablement process” and barriers to employment.
5-14 NIDRR Program Directory FY 2004 - Associated Disability Research Areas

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

New York

Using the U.S. Equal Employment Opportunity Commission (EEOC)

Employment Discrimination Charge Data System for Research and

Dissemination Purposes

Cornell University

Employment and Disability Institute

School of Industrial and Labor Relations

201 ILR Extension Building

Ithaca, NY 14853

smb23@cornell.edu

Principal Investigator: Susanne Bruyère, PhD

Public Contact: 607/255-9536 (V); 607/255-2891 (TTY); ; Fax: 607/255-2763

Project Number: H133G040265

Start Date: October 01, 2004

Length: 36 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: Using data from the Equal Employment Opportunity Commission (EEOC) Charge Data

System (CDS), this project analyzes trends in employment discrimination charges related to the ADA

and other laws. The CDS collects data on employment discrimination charges covered under Title I of

the ADA, as well as data on charges related to other laws. It contains information on (a) the demographic characteristics of charging parties, such as gender, racial and ethnic status, age, location, and

type of disability (e.g., back impairment, depression), (b) type of discriminatory behavior, such as

refusal to hire, failure to provide reasonable accommodation, unfair discharge, harassment, and (c)

charge outcomes, such as withdrawal with benefits, settlements, and other such outcomes. The project

uses these data to explore trends over time and across the states, and investigate whether these trends

are related to changes in the composition of the population with disabilities and changes in labor

market conditions. Using regression analysis, it explores the relationship of the ADA-related charge

rates to state-level economic conditions, government program participation by people with disabilities,

and other state-level characteristics. It also examines the changes in the composition of charges over

time with respect to the characteristics of charging party, the size and industry of the employer, the type

of alleged discriminatory treatment, and the EEOC ratings (A, B, C); it looks for the potential impact

of Supreme Court decisions within changes in these compositional changes. To achieve a better

understanding of patterns in ADA-related charges, researchers seek input from and work with the

EEOC and selected disability advocacy organizations, such as the law firm of Powers, Pyles, Sutter,

and Verville, the American Association of Persons with Disabilities, and representatives of the National Association of Protection and Advocacy Systems network.
NIDRR Program Directory FY 2004 - Associated Disability Research Areas 5-15

Field Initiated Projects (FIPs) Field Initiated Projects (FIPs)

South Carolina

A Six-Year Longitudinal Study of Community Integration, Subjective

Well-Being, and Health After Spinal Cord Injury: Relationship with

Gender, Race/Ethnicity, and Environmental Factors

Medical University of South Carolina

College of Health Professions

77 President Street

Charleston, SC 29425

cokerj@musc.edu

Principal Investigator: James S. Krause, PhD 843/792-1337

Public Contact: Jennifer Coker, MPH 843/792-2605; Fax: 843/792-0710

Project Number: H133G020218

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $149,734; FY 03 $149,941; FY 04 $149,840

Abstract: This longitudinal study identifies changes in quality of life and health outcomes over a sixyear period as a function of gender, race/ethnicity, and environmental factors. Follow-up data are

collected from 466 participants from three collaborating sites that include the Shepherd Center, Rancho

Los Amigos National Rehabilitation Center, and Craig Hospital. The same core outcome measures that

were used during the preliminary data collection in 1997-98 are being re-administered by phone.

Measures include the Craig Handicap Assessment Reporting Technique, the Older Adult Health and

Mood Questionnaire, the Reciprocal Support Scale, the Behavioral Risk Factor Surveillance Survey

and the Life Situation Questionnaire. In addition, newly developed measures are being used to identify

the relationship between environmental factors and adverse outcomes. These measures include the

Craig Hospital Inventory of Environmental Factors; Acculturation, Integration, Marginalization, and

Segregation; and the assimilation factor of the Community Integration Measure. A 2x4x2 longitudinal

factorial design is being used to analyze the data. A mediational model is being used to identify the

extent to which differences in environmental factors explain any associations of gender and raceethnicity with participation, subjective well-being, health behaviors, and health outcomes.

Knowledge Dissemination and Utilization

Dissemination and utilization are the tools through which to ensure that people with

disabilities become fully integrated and participating members of society. NIDRR’s

dissemination and utilization efforts ensure the widespread distribution, in usable

formats, of practical scientific and technological information generated by research,

demonstration, and related activities. NIDRR’s challenge is to reach diverse and

changing populations, to present research results in many different and accessible

formats, and to use technology appropriately.

Contents

Disability and Rehabilitation Research Projects ........................................................................................ 3

ADA Technical Assistance Projects....................................................................................................... 12

Assistive Technology Technical Assistance Projects ............................................................................... 13

NIDRR Contracts ................................................................................................................................ 15

Utilization Projects................................................................................................................................ 16

NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization 6-3

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Alabama

National Spinal Cord Injury Statistical Center

University of Alabama/Birmingham

SRC 515

1717 Sixth Avenue, South

Birmingham, AL 35249-7330

nscisc@uab.edu

http://www.spinalcord.uab.edu/show.asp?durki=24480

Principal Investigator: Michael J. DeVivo, DrPH 205/934-3320

Public Contact: Vicki Farris 205/934-5049; Fax: 205/934-2709

Project Number: H133A011201

Start Date: July 01, 2001

Length: 60 months

NIDRR Officer: Kristi E. Wilson, PhD

NIDRR Funding: FY 01 $349,988; FY 02 $350,000; FY 03 $350,000; FY 04 $350,000; FY 05

$350,000

Abstract: The Statistical Center has the following objectives: (1) establish the appropriate IT system;

(2) train and provide technical assistance to the Model SCI centers; (3) communicate with NIDRR and

the centers to ensure quality of the items in the database; (4) demonstrate the capacity to conduct and

facilitate research from the database; (5) link to other related databases; (6) incorporate culturally

appropriate methods of data collection and dissemination, including culturally sensitive measurement

approaches; (7) demonstrate the capacity to provide technical assistance to the Model SCI centers and

other related projects regarding database development and maintenance.
6-4 NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

National Resource Center for Parents with Disabilities

Through the Looking Glass

2198 Sixth Street, Suite 100

Berkeley, CA 94710-2204

tlg@lookingglass.org

http://www.lookingglass.org

Principal Investigator: Paul Preston, PhD

Public Contact: 510/848-1112 (V); 800/644-2666 (V); 800/804-1616 (TTY); Fax: 510/848-4445

Project Number: H133A040001

Start Date: January 01, 2004

Length: 36 months

NIDRR Officer: Phillip Beatty

NIDRR Funding: FY 04 $500,000; FY 05 $500,000

Abstract: The National Resource Center for Parents with Disabilities focuses on the 10.9 percent of

U.S. families with children in which one or both parents have a disability—nearly 9 million parents.

The Center provides: (1) accessible and disability-appropriate information regarding parenting with a

disability to parents, potential parents, disability advocates, and legal, medical, and social service

providers; (2) training to parents with disabilities, potential parents, and service providers; (3) technical

assistance that increases informed practice and informed decisions; (4) program consultation that

increases local and regional services that are accessible and disability-appropriate. To accomplish these

goals, project researchers: (1) consolidate and disseminate information and resources, (2) synthesize

and disseminate materials from other agencies and organizations, (3) develop and disseminate new

materials tailored to address the specific needs of parenting with disabilities and service providers, (4)

expand the national availability of training and technical assistance to parents with disabilities and

service providers, and (5) develop curricula to train future service providers. Parenting areas designated

as highest priority are: custody, pregnancy and birthing, adoption, adaptive parenting equipment, and

general parenting information. The project is staffed by nationally recognized experts regarding parents

with disabilities, the majority of whom are parents with disabilities or family members of parents with

disabilities.
NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization 6-5

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

California

Ideas for the New Millennium

World Institute on Disability

510 - 16th Street, Suite 100

Oakland, CA 94612-1520

kathy@wid.org

http://www.wid.org; http://www.disabilityworld.org

Principal Investigator: Kathy Martinez 510/251-4326

Public Contact: Jennifer Geagan 510/251-4310; Fax: 510/763-4109

Project Number: H133A990006

Start Date: October 01, 1999

Length: 60 months

NIDRR Officer: Eva M. Gavillan, EdD

NIDRR Funding: FY 99 $400,000; FY 00 $400,000; FY 01 $400,000; FY 02 $400,000; FY 03

$400,000; FY 04 $0 (No-cost extension through 12/31/2004)

Abstract: The ideas for the new millennium project creates a productive international exchange of

information and expertise on disability and rehabilitation, connecting disability research and advocacy

leadership in ten target countries with their peers in the United States. At the heart of this exchange is

an online information system that captures innovation, links government officials, policy-makers,

disability leaders, rehabilitation specialists, researchers, and innovators in a lively exchange of ideas,

networks, resources, and contacts. This sustainable network of information and resources on substantive disability issues is available across professions, cultures, and communities. The issues critical to the

information exchanges are: (1) disability rights and independent living, (2) employment and entrepreneurial activity, (3) access and technology, (4) mass media images, and (5) influence through governance. Using a civil rights perspective, the project addresses disability policy, law, advocacy, research,

and related developments in the ten countries. The project systematically promotes international exchange, reports results, and analyzes their significance in consumer-friendly formats and forums,

including a comprehensive database, five annual symposia, as well as a bi-monthly webzine,

www.disabilityworld.org, in English and Spanish. The project collaborates with four disability-led

organizations with substantial international experience.
6-6 NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Massachusetts

Web Accessibility Initiative, Phase II

Massachusetts Institute of Technology

W3C Web Accessibility Initiative

MIT/LCS Room NE43-355; 200 Technology Square

Cambridge, MA 02139

jbrewer@w3.org

http://www.w3.org/WAI

Principal Investigator: Tim Berners-Lee 617/253-5702

Public Contact: Judy Brewer 617/258-9741

Project Number: H133A000500

Start Date: October 01, 2000

Length: 60 months

NIDRR Officer: William Peterson

NIDRR Funding: FY 00 $499,999; FY 01 $499,998; FY 02 $500,000; FY 03 $499,999; FY 04

$500,000

Abstract: The Web Accessibility Initiative (WAI) Phase II develops technical solutions and educational resources to increase accessibility of the Web for people with disabilities, and works with organizations around the world to promote awareness and implementation of Web accessibility solutions. For

millions of individuals with visual, hearing, physical, cognitive and neurological disabilities, accessibility of the Web means access to the information society: to educational opportunity, employment,

commerce, government services, and more. WAI Phase II activities include (1) ensuring accessibility

support in a broad range of Web technologies through ongoing review of all World Wide Web Consortium (W3C) specifications for new Web technologies, and through liaison with other organizations

developing Web technologies; (2) developing advanced guidelines and techniques for accessible Web

content, for browsers and media players, and for authoring tools, and providing in-house technical

assistance to software developers on implementation of accessibility guidelines in their products; (3)

developing expanded techniques and resources for more effective evaluation of Web site accessibility;

(4) developing a broad array of educational and outreach resources and activities promoting awareness

and implementation of Web accessibility, including online and hard-copy resources, introductory

materials for general audiences and technical materials for more advanced audiences, best-practice

training resources and events, reference lists of tools, policies, and events, and liaison to other standards organizations interested in Web accessibility; and (5) analysis of potential accessibility issues in

research and development related to advanced Web technologies.
NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization 6-7

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New Jersey

Traumatic Brain Injury National Data Center

Kessler Medical Rehabilitation Research and Education Corporation (KMRREC)

1199 Pleasant Valley Way

West Orange, NJ 07052

kwood@kmrrec.org

http://www.tbindc.org

Principal Investigator: Mitchell Rosenthal, PhD 973/243-6971

Public Contact: Kenneth Wood, PhD 973/243-6871; Fax: 973/243-6990

Project Number: H133A011403

Start Date: July 01, 2001

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 01 $348,187; FY 02 $348,133; FY 03 $348,064; FY 04 $348,075; FY 05

$348,088

Other Funding: FY 03 $10,000 (NIDRR Supplement)

Abstract: Goals of this TBI National Data Center include: (1) data collection improvements through

development of an interactive web-based syllabus for the use of Traumatic Brain Injury Model Systems (TBIMS) staff, researchers and others that improves the quality and cost-effectiveness of data

collection efforts; (2) a new web site featuring a searchable TBI Model Systems Research and Publication Registry; (3) enhanced statistical and technical consultation services to streamline the database,

employ innovative statistical techniques to compensate for incomplete or missing data, make comparisons with other datasets, improve measurement tools and prediction models, and enhance analysis of

longitudinal data; (4) improved data collection methods based on the “focus group” feedback received

from the data collectors at the other centers, which include awareness and incorporation of techniques

designed to improve cultural sensitivity of data collection instruments and data collection methodologies used in the model systems; (5) consumer dissemination of the latest TBIMS research results

through a partnership with the Brain Injury Association of America (BIAA); (6) continued leadership

in TBIMS dissemination activities through Facts and Figures, TBIMS and BIAA web sites, NCDDR

dissemination programs, journal publications, and TBIMS conferences; (7) continued development of

policies that allow for public access to data, while protecting the confidentiality of subjects in the

database and incorporating the perspectives of both NIDRR and the TBIMS researchers and data

management teams; (8) collaboration with the NIDRR SCI and Burn Data Centers to develop advanced methods of database function, data acquisition, data quality assurance, and general Data Center

operations; (9) exploring feasibility of new projects with Center for Disease Control and other programs whose database have similar TBI populations; and (10) conducting site visits to each TBIMS to

assure the highest levels of data quality and database integrity.
6-8 NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Center for International Rehabilitation Research Information and

Exchange (CIRRIE)

State University of New York (SUNY) at Buffalo

Center for Assistive Technology

515 Kimball Tower

Buffalo, NY 14214

ub-cirrie@buffalo.edu

http://cirrie.buffalo.edu

Principal Investigator: John Stone, PhD 716/829-3141, ext. 125

Public Contact: Marcia E. Daumen 716/829-3900, ext. 146; Fax: 716/829-2211

Project Number: H133A990010

Start Date: September 01, 1999

Length: 60 months

NIDRR Officer: Eva M. Gavillan, EdD

NIDRR Funding: FY 99 $400,000; FY 00 $400,000; FY 01 $400,000; FY 02 $400,000; FY 03

$400,000; FY 04 $0 (No-cost extension through 8/31/2005)

Abstract: The mission of this Center is to improve rehabilitation services by obtaining and disseminating information on international rehabilitation research and practices. CIRRIE has four primary objectives: (1) develop and maintain an international research database, searchable from an accessible web

site and organized according to the major types of rehabilitation research, as delineated in the NIDRR

Long-Range Plan; (2) assist grantees of the Office of Special Education and Rehabilitation Services

(OSERS) to establish an international component within their domestic conferences by facilitating and

subsidizing participation by international experts and involve U.S. experts in international conferences;

(3) conduct an international exchange of research and technical assistance experts based on requests

from rehabilitation research centers in the U.S. and other countries; and (4) disseminate information to

rehabilitation service providers on the cultural issues relevant to meeting the needs of recent immigrants. Publications include monographs addressing the relevant cultural issues for the top ten countries

of origin of foreign-born people in the U.S. The monographs are based on a model of the service

provider as a “culture broker,” with the first monograph in the series addressing the theory of culture

brokering and its relevance to rehabilitation practice. A workshop on this topic is also available.
NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization 6-9

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

National Center for the Dissemination of Disability Research (NCDDR)

Southwest Educational Development Laboratory

211 East Seventh Street, Suite 400

Austin, TX 78701-3281

lharris@sedl.org

http://www.ncddr.org

Principal Investigator: John Westbrook, PhD

Public Contact: Lin Harris, Information Specialist 800/266-1832 (V/TTY); Fax: 512/476-2286

Project Number: H133A990008

Start Date: September 30, 1999

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 99 $750,000; FY 00 $750,000; FY 01 $750,000; FY 02 $750,000; FY 03

$750,000; FY 04 $750,000

Abstract: The goal of the National Center for the Dissemination of Disability Research (NCDDR) is

to promote the utilization of research results developed through NIDRR grants/contracts. Major areas

of work of the NCDDR include: (1) Research designed to collect information that assists in identifying

the needs and most likely strategies that assist in matching dissemination practices with intended user

audiences. Activities include conducting annual surveys, focus groups, surveys, and annual reporting

of state-of-the-art information about NIDRR grantees’ dissemination successes. (2) Demonstration

conducted to determine the effectiveness of new strategies and approaches in achieving intended

dissemination and utilization outcomes. Activities include developing and using innovative web-based

mechanisms, increasing common portal access to substantive English and Spanish language resources

of grantees, and developing outreach strategies for under-represented audiences. (3) Dissemination and

Utilization implemented not to support the simple distribution of materials and other resources but

rather the use of research outcomes in meaningful ways by those that can most benefit from their use.

Activities include production of print and web-based informational products, networking of grantees to

maximize outreach impact, and developing networks with a variety of research stakeholder groups for

information and strategy exchanges. (4) Technical Assistance provided to NIDRR grantees to build

understanding, skills, and resources related to the dissemination and utilization of their disability

research outcomes. Activities include providing onsite and offsite assistance in planning effective

dissemination efforts, providing direct assistance to grantees with targeted dissemination efforts, and

assisting in designing evaluation strategies to measure dissemination and utilization outcomes.
6-10 NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Research Utilization Support and Help (RUSH) Project

Southwest Educational Development Laboratory

211 East Seventh Street, Suite 448

Austin, TX 78701-3253

mlinder@sedl.org

http://www.researchutilization.org

Principal Investigator: John Westbrook, PhD

Public Contact: Mark Linder, Communications Assistant 800/761-7874 (V/TTY); Fax: 512/476-

2286

Project Number: H133A031402

Start Date: June 01, 2003

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 03 $350,000; FY 04 $350,000; FY 05 $350,000

Abstract: The RUSH project develops and tests models for increasing the effective use of NIDRR

research results. The RUSH Project intends to assess utilization successes in terms of benefits produced for intended user audiences including: people with disabilities and their families, disability

researchers, and disability service providers, among others. The goal is to expand awareness, strategies, and evaluation of knowledge utilization outcomes among NIDRR-supported researchers in order

to increase access and use of research results by those who can benefit the most from them. The

objectives for the RUSH Project are: (1) to assess the use of and obstacles to the dissemination/utilization of NIDRR-supported disability research by a wide range of potential target audiences; (2) to

develop a variety of strategies and approaches designed to accommodate differing topics of disability

research information and diverse target audiences; (3) to demonstrate a variety of new strategies and

approaches to improve/achieve utilization outcomes of disability research findings; (4) to disseminate

information about knowledge utilization models and their associated effectiveness by topic, target

audience, and level of knowledge transfer needed in order to increase the use of NIDRR granteesÆ

research outcomes; (5) to provide new and current NIDRR researchers with information they can use

to strengthen their dissemination and utilization approaches; and (6) to provide technical assistance to

NIDRR researchers to build understanding, skills, and resources in developing, implementing, and

evaluating knowledge utilization models within NIDRR project designs.
NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization 6-11

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Model Spinal Cord Injury Systems Dissemination Center

The Institute for Rehabilitation and Research (TIRR)

1333 Moursund Street

Houston, TX 77030-3405

khart@bcm.tmc.edu

http://www.mscisdisseminationcenter.org

Principal Investigator: Karen A. Hart, PhD

Public Contact: 713/797-5946; Fax: 713/797-5982

Project Number: H133A011501

Start Date: September 01, 2001

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 01 $150,000; FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05

$150,000

Abstract: The Model Spinal Cord Injury Systems (MSCIS) Dissemination Center is a collaborative

effort that includes the NIDRR-funded Model Spinal Cord Injury Centers and SCI collaborative

research projects. The Center provides information about MSCIS research and publications to inquirers

and model system staff members via the Internet, the telephone, and surface mail. Overall objectives of

the project are: (1) documenting the scientific productivity of the Model SCI Centers and Collaborative

Research Projects and providing a history of the Model Centers’ publications; (2) verifying that the

publications are peer-reviewed by downloading citations from Medline, Current Contents, Cumulative

Index to Nursing and Allied Health Literature (CINAHL), and Psychology Literature (PsychLit); (3)

ensuring the accuracy of the citations through verification by Center and author semi-annually; (4)

maintaining, on a semi-annual basis, the listing of web-accessible citations hosted on web site of the

Regional Spinal Cord Injury Center of the Delaware Valley at Thomas Jefferson University Hospital in

Philadelphia; (5) documenting and verifying the accuracy and currency of published book chapters and

textbooks; (6) storing information electronically in Reference Manager in a format that can be uploaded to Reference Web Poster on the Center’s web site; (7) gathering structured data from each of

the Model SCI Centers and Collaborative Research Projects that describes the educational products

produced and the presentations given; (8) classifying the educational products and presentations

produced by the Model SCI Centers and Collaborative Research Projects to provide a variety of

accurate retrieval options for interested constituents; (9) developing a data storage system that facilitates

uploads into the program’s web site in accessible format for interested constituents such as individuals

with SCI, organizations, NIDRR, NCDRR, NARIC, the Model SCI Centers, libraries, rehabilitation

facilities, professionals, and students; (10) disseminating efficiently and effectively to the greatest

number of constituents the publications, educational products, and presentations produced by the

Model SCI Centers and the Collaborative Research Projects as an aggregate representation of this

NIDRR program—’s contribution to the field of SCI; (11) providing a mechanism for NCDRR and

NARIC to verify that they have complete and accurate information about all the Model SCI Centers

and their accomplishments so that NCDDR and NARIC can achieve their dissemination objectives;

and (12) reaching the greatest number of individuals possible with information and education about

SCI by efficient use of NIDRR-funded resources and personnel.
6-12 NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization

ADA Technical Assistance Projects ADA Technical Assistance Projects

Washington

National Center on Accessible Information Technology in Education

University of Washington

Center on Human Development and Disability

Box 357920

Seattle, WA 98195-7920

accessit@u.washington.edu

http://www.washington.edu/accessit

Principal Investigator: Kurt Johnson, PhD 206/543-3677

Public Contact: Alan J. Knue 866/968-2223 (V/TTY); 206/616-2223 (V); 866/866-0162 (TTY);

Fax: 206/543-4779

Project Number: H133D010306

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $700,000; FY 02 $700,000; FY 03 $700,000; FY 04 $700,000; FY 05

$700,000

Abstract: This program, working nationwide with NIDRR-funded Disability Business and Technical

Assistance Centers (DBTACs), serves to increase the access of individuals with disabilities to information technology in educational institutions at all academic levels nationwide. The Center facilitates the

implementation of policies, procedures, and practices that promote the procurement and use by educational entities of accessible information technology that applies universal design principles and meets

recognized standards. By providing training, support, dissemination materials, and technical assistance

to the DBTACs, AccessIT utilizes and builds on this existing infrastructure for information dissemination and technical support. Additionally, information and training to educational institutions is provided

through the Center’s website and presentations at educational events. The website includes accessibility checklists, best practices, knowledge base articles, links to resources, and case studies, tailored to

applications of information technology in education. The Center also conducts training sessions and

presentations at major educational, disability, and technology conferences to inform target audiences

about how to make information technology in education accessible to individuals with disabilities and

of the availability of resources from AccessIT and of technical assistance from the DBTACs. Leading

the efforts of the Center are the University of Washington’s Center for Technology and Disability

Studies and Disabilities, Opportunities, Internetworking and Technology. NIDRR-funded Rehabilitation Engineering Research Centers and the IT Technical Assistance and Training Center, DBTACs,

project EASI (Equal Access to Software and Information), and Microsoft Corporation are among its

many partners.
NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization 6-13

Assistive Technology Technical Assistance Projects Assistive Technology Technical Assistance Projects

Georgia

assitivetech.net - Internet Site on Assistive Technology

Georgia Institute of Technology

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street

Atlanta, GA 30318

beth.bryant@arch.gatech.edu

http://www.assistivetech.net

Principal Investigator: Elizabeth A. Bryant 404/894-0254

Public Contact: Robert Todd, Project Director 404/894-6895; 800/726-9119 (V/TTY); Fax: 404/894-

9320

Project Number: H224B020002

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 02 $250,000; FY 03 $250,000; FY 04 $250,000

Abstract: The National Assistive Technology Internet Site (www.assistivetech.net) increases the

availability of, and ease of access to, information about assistive technology (AT), services, and resources available for people with disabilities. The web site provides 24-hour access to AT information

for those with Internet connectivity, and a toll-free telephone number for those without it. The site

serves all people but focuses particularly on people with disabilities, their families, service providers,

educators, and employers. The assistivetech.net web site features: access to information about more

than 15,500 AT devices, innovative automated intelligent agents to assist with AT definition and

selection, vendor data entry interface to enable vendor involvement in maintaining AT information, and

over 1,000 electronic links to appropriate and accessible public and private resources and information

related to all types of disabilities, including low-level reading skills. Enhancements to the site include:

natural language search interface to enhance site usability, a forum for user-submitted accommodations

and strategies, and improved, easier-to-use access to AT product information.
6-14 NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization

Assistive Technology Technical Assistance Projects Assistive Technology Technical Assistance Projects

New York

National Assistive Technology Advocacy Project

Neighborhood Legal Services, Inc.

Disability Law Unit

Ellicott Square Building

295 Main Street, Room 495

Buffalo, NY 14203

jsheldon@nls.org

http://www.nls.org

Principal Investigator: James R. Sheldon Jr., Esq.

Public Contact: 716/847-0650; Fax: 716/847-0227

Project Number: H224B020004

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Carol Dobak

NIDRR Funding: FY 02 $160,000; FY 03 $160,000; FY 04 $160,000

Abstract: This project provides management- and advocacy-related technical assistance to attorneys

and advocates who work for the 56 Protection and Advocacy for Assistive Technology (P&AAT)

projects, as well other public entities with an interest in the funding of AT. Advocacy-related training is

provided through an annual project conference; sessions at the annual National Association of Protection and Advocacy Systems (NAPAS) conference; sessions at statewide or regional conferences

sponsored by protection and advocacy programs or State AT Act projects; and distance training events

on special education, funding of work-related AT, and other topics to be determined. Managementrelated training is provided at four annual training events sponsored by NAPAS. The project prepares

publications on the funding of AT through a variety of funding sources and acts as a clearinghouse for

funding-related documents through in-house resource libraries containing administrative hearing

decisions; a wide range of court-related documents, including briefs and complaints; and model policies, procedures, and practices for delivery of AT in special education systems. A national AT email list

provides a low-cost, efficient way to communicate with a nationwide network of AT advocates. The

project also maintains a web site containing information relative to the funding of AT, including many

of the project’s publications and links to other web-based resources to support AT advocacy efforts.
NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization 6-15

NIDRR Contracts NIDRR Contracts

North Carolina

Technical Support for Data Collection Development: Implementation of

NIDRR’s Web-Based Performance Reporting System Data Collection

RTI International

Center for Research in Education

3040 Cornwallis Road

P.O. Box 12194

Research Triangle Park, NC 27709-2194

cat@rti.org

http://www.rti.org

Principal Investigator: Christene A. Tashjian

Public Contact: 919/541-6128; Fax: 919/541-5849

Project Number: ED-01-CO-0052

Start Date: April 18, 2002

Length: 36 months

NIDRR Officer: Mary Darnell

NIDRR Funding: FY 02 $175,000; FY 03 $175,000; FY 04 $178,433

Abstract: This project ensures the continuation of technical assistance activities for NIDRR staff and

grantees of 8 programs (ARRT, D&U, DBTAC, DRRP, FIP, Model Systems, RERC, RRTC) using a

web-based reporting system for collection of annual performance information. RTI staff, in consultation with NIDRR, developed the system and is responsible for ongoing system maintenance and

implementation. The system meets Section 508 accessiblity requirements; access is restricted to current

grantees who are assigned unique passwords they must enter (along with their federal award number)

to use the reporting system. RTI staff assist grantees with technical and programmatic questions they

may have while inputing their annual data into the system. RTI is responsible for updating programspecific instruction manuals, reviewing the technical assistance logs to suggest possible changes to the

system to make it more ‘user-friendly’, and providing NIDRR with quarterly updates of the data base.

Project staff conduct periodic briefings for NIDRR staff on the individual grant programs. Based on

NIDRR’s specifications, RTI staff will analyze grantee data and submit a program performance report.
6-16 NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization

Utilization Projects Utilization Projects

Maryland

National Rehabilitation Information Center (NARIC)

HeiTech Services, Inc.

4200 Forbes Boulevard, Suite 202

Lanham, MD 20706

naricinfo@heitechservices.com

http://www.naric.com

Principal Investigator: Mark X. Odum

Public Contact: Information Specialists 800/346-2742 (V); 301/459-5984 (TTY); 301/459-5900 (V);

Fax: 301/459-4263

Project Number: ED-02-CO-0002

Start Date: January 01, 2002

Length: 36 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $740,000; FY 03 $695,972

Abstract: The National Rehabilitation Information Center (NARIC) maintains a research library of

more than 65,000 documents and responds to a wide range of information requests, providing facts

and referral, database searches, and document delivery. Through telephone information referral and the

Internet, NARIC disseminates information gathered from NIDRR-funded projects, other federal

programs, and from journals, periodicals, newsletters, films, and videotapes. NARIC maintains

REHABDATA, a bibliographic database on rehabilitation and disability issues, both in-house and on

the Internet. Users are served by telephone, mail, electronic communications, or in person. NARIC

also prepares and publishes the annual NIDRR Program Directory, available in database format from

NARIC’s web site.
NIDRR Program Directory FY 2004 - Knowledge Dissemination and Utilization 6-17

Utilization Projects Utilization Projects

Maryland

ABLEDATA Database Program

ORC Macro

8630 Fenton Street, Suite 930

Silver Spring, MD 20910

abledata@orcmacro.com

http://www.abledata.com

Principal Investigator: Katherine Belknap 301/608-8998, ext. 100

Public Contact: Katherine Belknap 800/227-0216 (V); 301/608-8998 (V); 301/608-8912 (TTY);

Fax: 301/608-8958

Project Number: ED-02-000128

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Ellen Blasiotti

NIDRR Funding: FY 02 $516,829; FY 03 $589,408; FY 04 $635,313

Abstract: This project maintains and expands the ABLEDATA database, develops information and

referral services that are responsive to the special technology product needs of consumers and professionals, and provides the data to major dissemination points to ensure wide distribution and availability

of the information to all who need it. The ABLEDATA database contains information on more than

26,000 commercially produced and custom-made assistive devices. Requests for information are

answered via telephone, mail, electronic communications, or in person.

ADA Technical Assistance Programs

The Americans with Disabilities Act (ADA) opens more opportunities for persons with

disabilities. It also places certain responsibilities on employers, transit and

communication systems, state and local governments, and public accommodations. To

assist covered parties to understand and comply with the ADA, NIDRR has funded a

network of grantees to provide information, training, and technical assistance to

businesses and agencies with duties and responsibilities under the ADA.

Contents

ADA Technical Assistance Projects......................................................................................................... 3

NIDRR Program Directory FY 2004 - ADA Technical Assistance Programs 7-3

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region I - CT, ME, MA, NH, RI, and VT

New England ADA Center and Universal Design in Educational IT

(Disability and Business Technical Assistance Center - Region I)

Adaptive Environments Center, Inc.

374 Congress Street, Suite 301

Boston, MA 02210-1807

oharrison@adaptiveenvironments.org; vfletcher@adaptiveenvironments.org

http://www.adaptiveenvironments.org

Principal Investigator: Valerie Fletcher 617/695-1225, ext. 26

Public Contact: Oce Harrison, EdD, Project Director 800/949-4232 (V/TTY in CT, ME, MA, NH,

RI, and VT); 617/695-1225, ext. 27 (V/TTY); Fax: 617/482-8099

Project Number: H133D010211

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $850,000; FY 02 $850,000; FY 03 $850,000; FY 04 $850,000

Abstract: The New England DBTAC provides technical assistance, training, and information dissemination for Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. The new

grantee retains relationships with previously contracted state affiliates, the statewide coalitions, the

annual incentive grants, and the newsletter. Groups with rights or responsibilities under the ADA that

are targeted for expanded outreach include self-advocacy organizations and the ARC; libraries; human

resources trade groups; the hospitality industry, including visitor and convention bureaus; schools; and

health care professionals. Annual regional training initiatives include day-long workshops for state,

municipal, and county ADA coordinators; half-day trainings for centers for independent living; training

for architects on ADA updates; outreach and training in minority and immigrant communities both to

people with disabilities and business owners; and voter accessibility training. Implementation of the

education-based IT component of the project includes: (1) establishing regional linkages to educational

entities for cooperation/collaboration; (2) establishing the capacity in each state to coordinate and build

skill, using resources of state organizations and the state infrastructure to reach large audiences through

familiar, local methods; (3) training using a variety of distance learning techniques tailored to target

audiences; (4) convening a collaborative conference on universal design on the web with the Rhode

Island School of Design; (5) running a public awareness campaign that puts the issue of universal

design on the educational IT agenda; and (6) identifying best practices in the region to be written up as

case studies each year.
7-4 NIDRR Program Directory FY 2004 - ADA Technical Assistance Programs

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region II - NJ, NY, PR, and VI

Northeast Disability and Business Technical Assistance Center - Region

II

Cornell University

Program on Employment and Disability; School of Industrial and Labor Relations

107 ILR Extension Building

Ithaca, NY 14853-3901

northeastada@cornell.edu

http://www.northeastada.org

Principal Investigator: Susanne Bruyére, PhD 607/255-7727

Public Contact: Andrea Haenlin-Mott, Project Director 800/949-4232 (V/TTY, in NJ, NY, PR, and

VI); 607/255-8348 (V); 607/255-6686 (TTY); Fax: 607/255-2763

Project Number: H133D010205

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,100,000; FY 02 $1,100,000; FY 03 $1,100,000; FY 04 $1,100,000

Abstract: The Northeast ADA & Accessible Information Technology Center provides technical

assistance, training, and information dissemination for New Jersey, New York, Puerto Rico, and the

Virgin Islands on the ADA and accessible information technology. A new focus for the project is

information, training, and technical assistance to educational entities in Region II, on the procurement

and use of accessible information technology for students and employees with disabilities. Services are

comprehensive, involving effective use of existing networks and collaborations with regional partners

and organizations that currently deliver services to educational organizations, parent organizations,

disability advocacy organizations, employers, labor unions, and state and local government. The

Program on Employment and Disability at Cornell University’s School of Industrial and Labor Relations takes the lead in a regional collaborative effort that includes the following partners: Office of the

Advocate for Persons with Disabilities for New York state; AccessPoint Solutions in New Jersey; the

Department of Architecture and Center for Assistive Technology at the State University of New York

(SUNY) at Buffalo; the Assistive Technology Project at the University of Puerto Rico; the University

Affiliated Program at the University of the Virgin Islands; and various local agencies and organizations.
NIDRR Program Directory FY 2004 - ADA Technical Assistance Programs 7-5

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region III - DC, DE, MD, PA, VA, and WV

Mid-Atlantic Disability Business Technical Assistance Center - Region

III

TransCen, Inc.

451 Hungerford Drive, Suite 607

Rockville, MD 20850-4151

adainfo@transcen.org

http://www.adainfo.org

Principal Investigator: Marian S. Vessels, Project Director

Public Contact: 800/949-4232 (V/TTY, in DC, DE, MD, PA, VA, and WV); 301/217-0124 (V/

TTY); Fax: 301/217-0754

Project Number: H133D010212

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,099,998; FY 02 $1,099,998; FY 03 $1,099,998; FY 04 $1,099,998

Abstract: The Mid-Atlantic DBTAC provides technical assistance, training, and information dissemination for Delaware, the District of Columbia, Maryland, Pennsylvania, Virginia, and West Virginia.

Activities are organized under two major goals: (1) provide technical assistance, training, and information dissemination about the ADA; and (2) provide technical assistance, training, and information

dissemination about accessible education-based IT. Individual activities to meet these goals and project

objectives are designed to build capacity among State and local agencies, including centers for independent living, so that the Center’s impact and effectiveness is maximized. Approximately 20,000

individuals and organizations are directly impacted through project activities each year.
7-6 NIDRR Program Directory FY 2004 - ADA Technical Assistance Programs

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region IV - AL, FL, GA, KY, MS, NC, SC, and TN

Southeast Disability Business Technical Assistance Center - Region IV

Georgia Tech Research Corporation

Center for Assistive Technology and Environmental Access (CATEA)

490 Tenth Street

Atlanta, GA 30318

sedbtacproject@catea.org

http://www.sedbtac.org

Principal Investigator: Shelley Kaplan, Project Director 404/385-0636

Public Contact: 800/949-4232 (V/TTY, in AL, FL, GA, KY, MS, NC, SC, and TN); 404/385-0636

(V/TTY); Fax: 404/385-0641

Project Number: H133D010207

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,450,000; FY 02 $1,450,000; FY 03 $1,450,000; FY 04 $1,450,000

Abstract: The Southeast DBTAC provides technical assistance, training, and information dissemination for Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, and

Tennessee. The project: (1) provides expert technical assistance to promote voluntary and effective

implementation of the ADA among entities with rights and responsibilities; (2) facilitates widespread

use, particularly in educational entities, of accessible and usable electronic and IT; (3) fosters and

facilitates regional capacity-building by cultivating collaborations between the regional Educational

Leadershipn: Team and the existing ADA Leadership Network; (4) expands training programs by

incorporating enhanced distance learning methods, including teleconferences, web-based training, and

electronic discussions, that are designed in a fully accessible and useful manner; and (5) identifies and

disseminates “Best Practices” in employment and IT in order to encourage and support replication. To

build on its ten-year history of regional capacity building, the DBTAC: (1) strengthens its ADA

Leadership Network of eight state and 80 local affiliates; (2) shares expertise about IT through the

Georgia Tech Center for Assistive Technology and Environmental Access (CATEA)’s Information

Technology Technical Assistance and Training Center (ITTATC) project; and (3) facilitates accessible

education-based IT across the educational spectrum via the newly-established Educational Leadership

Team.
NIDRR Program Directory FY 2004 - ADA Technical Assistance Programs 7-7

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region V - IL, IN, MI, MN, OH, and WI

Great Lakes Disability Business Technical Assistance Center - Region V

University of Illinois at Chicago

Department of Disability and Human Development

1640 West Roosevelt Road, Room 405

Chicago, IL 60608-6904

gldbtac@uic.edu

http://www.adagreatlakes.org

Principal Investigator: Robin A. Jones, Project Director 312/996-1059

Public Contact: 800/949-4232 (V/TTY, in IL, IN, MI, MN, OH, and WI); 312/413-1407 (V/TTY);

Fax: 312/413-1856

Project Number: H133D010203

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,450,000; FY 02 $1,478,750; FY 03 $1,450,000; FY 04 $1,450,000

Abstract: The Great Lakes DBTAC provides technical assistance, training, and information dissemination for Illinois, Indiana, Michigan, Minnesota, Ohio, and Wisconsin. The project’s audiences

include business, government, and education organizations and individuals with disabilities and their

families. The Center assists these audiences in understanding their rights and responsibilities under the

ADA. For example, technical assistance and training are provided to educational entities regarding

their responsibility to ensure that the IT they purchase and use is accessible to and usable by individuals with disabilities. The aim is that within the education system administrators, educators, staff, students, and parents have full and equal access to programs, services, and information used or disseminated through a variety of information technologies. The Center programs and services are coordinated

through a network of collaborators at the local, state, and regional level representing business, government, education entities and people with disabilities. Services and programs include direct technical

assistance, training, and materials dissemination utilizing a variety of methods and strategies.
7-8 NIDRR Program Directory FY 2004 - ADA Technical Assistance Programs

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VI - AR, LA, NM, OK, and TX

Southwest Disability and Business Technical Assistance Center

(Southwest DBTAC-Region VI)

The Institute for Rehabilitation and Research (TIRR)

Independent Living Research Utilization (ILRU)

2323 South Shepherd Boulevard, Suite 1000

Houston, TX 77019-7024

dlrp@ilru.org

http://www.dlrp.org

Principal Investigator: Lex Frieden 713/502-0232

Public Contact: Wendy Wilkinson, Project Director 800/949-4232 (V/TTY, in AR, LA, NM, OK,

and TX); 713/520-0232 (V); 713/520-5136 (TTY); Fax: 713/520-5785

Project Number: H133D010210

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,099,997; FY 02 $1,099,997; FY 03 $1,099,997; FY 04 $1,099,997

Abstract: The Southwest DBTAC provides a comprehensive array of training, technical assistance,

and dissemination services on the Americans with Disabilities Act, accessible information technology

(IT), and other disability-related laws in the five states of Federal Region VI. The Southwest DBTAC

uses a collaborative structure of partners in all states, which enhances its ability to offer all services on

a state and local basis. Key partners include the New Mexico Technology Assistance Project, the

Southwest Educational Development Laboratory and several centers for independent living (CILs).
NIDRR Program Directory FY 2004 - ADA Technical Assistance Programs 7-9

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VII - IA, KS, MO, and NE

Great Plains ADA and Information Technology Center - Region VII

University of Missouri/Columbia

100 Corporate Lake Drive

Columbia, MO 65203

ada@missouri.edu

http://www.adaproject.org

Principal Investigator: Jim de Jong, Project Director 573/882-3600 (V)

Public Contact: 800/949-4232 (V/TTY, in IA, KS, MO, and NE); 573/882-3600 (V/TTY); Fax: 573/

884-4925

Project Number: H133D010201

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $850,000; FY 02 $850,000; FY 03 $850,000; FY 04 $850,000

Abstract: The Great Plains DBTAC provides technical assistance, training, and information dissemination for Iowa, Kansas, Missouri, and Nebraska. In order to facilitate successful implementation of

the ADA and accessible education-based IT in Region VII, the project and its collaborating partners:

(1) provide training and technical assistance, and disseminate materials to individuals and entities with

responsibilities and rights under the ADA regarding the ADA’s requirements as well as developments

in case law, policy, and implementation; (2) increase the capacity of organizations at the state and local

level, including centers for independent living (CILs), to provide training on the ADA; (3) provide

training and technical assistance, and disseminate material on the legal obligations of educational

entities to provide accessible IT to students and employees; (4) provide information to CILs, parent

training information centers, and regional resource centers on accessible education-based IT; (5)

increase the capacity of organizations at the state and local level, including CILs, to provide technical

assistance; (6) provide technical assistance to educational entities to enable them to conduct selfevaluations on the accessibility of their IT; and (7) provide technical assistance, either directly or

through referral, regarding how to make existing IT accessible and ensure that new IT acquisitions are

accessible.
7-10 NIDRR Program Directory FY 2004 - ADA Technical Assistance Programs

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region VIII - CO, MT, ND, SD, UT, and WY

Rocky Mountain Disability Business Technical Assistance Center -

Region VIII

Meeting the Challenge, Inc.

3630 Sinton Road, Suite 103

Colorado Springs, CO 80907-5072

RegionVIII@mtc-inc.com

http://www.adainformation.org

Principal Investigator: Robert H. Gattis, Jr., Project Director 719/444-0252

Public Contact: 800/949-4232 (V/TTY, in CO, MT, ND, SD, UT, and WY); 719/444-0268 (V/

TTY); Fax: 719/444-0269

Project Number: H133D010204

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $849,716; FY 02 $849,157; FY 03 $849,576; FY 04 $849,993

Abstract: The Rocky Mountain DBTAC provides technical assistance, training, and information

dissemination for Colorado, Montana, North Dakota, South Dakota, Utah, and Wyoming. The project

builds the capacity for reaching every individual, business, public entity, and educational institution

with training, materials dissemination, and technical assistance on the ADA and educational-based IT

accessibility. A comprehensive program expands a collaborative network consisting of key agencies

and organizations throughout the region. This project also operates and maintains the ADA Impact

Measurement System (AIMS), a web-based system that collects customer survey data. This system

allows the ten regional DBTACs to evaluate the outcomes of the DBTAC program quantitatively.
NIDRR Program Directory FY 2004 - ADA Technical Assistance Programs 7-11

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region IX - AZ, CA, HI, NV, and the Pacific Basin

Pacific ADA & IT Center (Pacific DBTAC)-Region IX

Public Health Institute

555 12th street

Suite 130

Oakland, CA 94607-4046

adatech@pdbtac.com

http://www.pacdbtac.org

Principal Investigator: Erica C. Jones, Project Director 510/285-5600 (V/TTY)

Public Contact: 800/949-4232 (V/TTY, in AZ, CA, HI, NV, and the Pacific Basin); 510/285-5600

(V/TTY); Fax: 510/285-5614

Project Number: H133D010209

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $1,450,000; FY 02 $1,450,000; FY 03 $1,450,000 FY 04 $1,450,000

Abstract: The Pacific DBTAC provides technical assistance, training, and information dissemination

for Arizona, California, Hawaii, Nevada, and the Pacific Basin. The latest funding cycle includes a

series of innovative initiatives and approaches to enhance compliance with ADA rules and regulations.

There is also an integrated action plan to enhance the availability of accessible IT equipment in Federal

Region IX, primarily through a focus on educational institutions as key sites for adopting the principles

of Section 508, and for ensuring full access to IT for young people with disabilities. The Pacific

DBTAC’s interdisciplinary, multilevel management strategy ensures that all project objectives are

tracked and attained and that Center services are fully integrated and delivered in an effective, costefficient, and accessible manner. The DBTAC provides quality training, federally approved materials,

and technical assistance services to requesters who seek support, advice, and information and it conducts proactive strategic outreach and education services that promote adherence to ADA regulations

and principles at all levels of society. Education-Based Information Technology, being a key focus,

uses best practices to promote utilization throughout school systems.
7-12 NIDRR Program Directory FY 2004 - ADA Technical Assistance Programs

ADA Technical Assistance Projects ADA Technical Assistance Projects

Region X - AK, ID, OR, and WA

Northwest ADA/IT Center (Disability Business Technical Assistance

Center - Region X)

Oregon Health and Science University

Oregon Institute on Disability and Development

P.O. Box 574

Portland, OR 97207-0574

nwada@ohsu.edu

http://www.nwada.org

Principal Investigator: Charles Drum, JD, PhD 503/494-8047

Public Contact: 800/949-4232 (AK, ID, OR, and WA only); 503/494-6747; Fax: 503/494-6868

Project Number: H133D010002

Start Date: October 01, 2001

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 01 $850,000; FY 02 $850,000; FY 03 $850,000; FY 04 $850,000

Abstract: The Northwest DBTAC/Information Technology Center provides technical assistance,

training, and information dissemination for Alaska, Idaho, Oregon, and Washington. Audiences

include people with disabilities, state and local governments, and businesses in Region X. In addition

to the Americans with Disabilities Act (ADA) and other state and federal disability laws and regulations, the Center also provides technical assistance, training, and dissemination to educational entities

regarding “best practices” information on accessible IT. The sources of such information include the

new National Center on Accessible Education-Based Information Technology.
NIDRR Program Directory FY 2004 - ADA Technical Assistance Programs 7-13

ADA Technical Assistance Projects ADA Technical Assistance Projects

Virginia

National ADA Program Assistance Coordinator

CESSI

6858 Old Dominion Drive, Suite 250

McLean, VA 22101

adata@adata.org

http://www.adata.org

Principal Investigator: Shelia Newman

Public Contact: Jennifer Eckel, Project Director 703/448-6155 (V); 703/448-3079 (TTY); Fax: 703/

442-9015

Project Number: ED-02-CO-0008

Start Date: May 03, 2002

Length: 60 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 02 $557,883; FY 03 $577,566; FY 04 $597,152

Abstract: The role of the ADA Program Assistance Coordinator (PAC) is to enhance the performance

of the organizations that are members of NIDRR’s nationwide ADA Technical Assistance grant

program. These include ten regional Disability and Business Technical Assistance Centers (DBTACs),

and the National Center for Accessible Information Technology at University of Washington

(AccessIT). The Program Assistance Coordinator conducts: (1) coordination services, (2) collaborative

assistance, (3) public relations, and (4) reporting activities. In addition, the PAC organizes and manages the semi-annual Project Directors’ meetings. It facilitates legal review of grantee generated materials and conducts periodic searches for legal proceedings on the ADA and disability related laws in

federal and circuit courts. The PAC identifies and distributes appropriate materials from federal agencies, related NIDRR research projects, and private and public sector organizations. As a gateway to the

national ADA technical assistance grant program, the PAC maintains a national Web site, develops and

disseminates promotional materials, and provides the DBTACs with daily news updates to assure they

have timely information on disabilty related legislation.

Capacity-Building for Rehabilitation Research and Training

NIDRR funding for capacity building supports advanced instruction for researchers

and service providers, and training for consumers in applications of new research and

technology. This involves training researchers across disciplines, training rehabilitation

practitioners and service providers to use research-generated knowledge and new

techniques, and training consumers to participate in research efforts. Distinguished and

Merit Fellowships are provided for a one-year period of intense research.

Contents

Rehabilitation Research and Training Centers (RRTCs) ............................................................................ 3

Disability and Rehabilitation Research Projects ........................................................................................ 4

Fellowships (Merit)................................................................................................................................. 9

Advanced Rehabilitation Research Training Projects .............................................................................. 13

NIDRR Contracts ................................................................................................................................ 28

NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training 8-3

Rehabilitation Research and Training Centers (RRTCs) Rehabilitation Research and Training Centers (RRTCs)

Illinois

UIC National Research and Training Center on Psychiatric Disability

University of Illinois at Chicago

Department of Psychiatry

104 South Michigan Avenue, Suite 900

Chicago, IL 60603-5902

http://www.psych.uic.edu/uicnrtc

Principal Investigator: Judith A. Cook, PhD 312/422-8180, ext. 19

Public Contact: Jessica A. Jonikas 312/422-8180, ext. 18 (V); 312/422-0706 (TTY); Fax: 312/422-

0740

Project Number: H133B000700

Start Date: September 30, 2000

Length: 60 months

NIDRR Officer: David W. Keer

NIDRR Funding: FY 00 $450,000; FY 01 $450,000; FY 02 $450,000; FY 03 $450,000; FY 04

$450,000

Other Funding: FY 00 $300,000 (CMHS); FY 01 $300,000 (CMHS); FY 02 $300,000 (CMHS)

Abstract: This Center conducts a comprehensive series of research and training projects that focus on

increasing self-determination for persons with psychiatric disabilities. The Center’s current projects are

composed of five core areas: (1) choices in treatment decision-making; (2) economic self-sufficiency; (3)

consumer advocacy under managed care; (4) career development through real jobs for real wages; and (5)

strengthening self-determination skills and self-advocacy. These core areas reaffirm that people with psychiatric disabilities have the right to maximal independence, which grows out of making choices in the decisions

that affect their lives. Project activities are implemented by multidisciplinary workgroups composed of

consumers, families, service providers, state agency administrators, researchers, and Center staff. Outcome

and measurement tools developed for each core area assess key outcomes and program policies related to

self-determination. The project includes a collaboratively planned state-of-the-science conference and

workshop series on self-determination and psychiatric disabilities and a comprehensive report on selfdetermination in this area. Advanced technology is incorporated into each projectð:’s objectives and Center

training and dissemination activities. Multimedia formats ensure widespread accessibility of the Center’s

products and materials to multiple constituents. Additionally, the Center conducts evaluation and basic

research; trains consumers, families, and rehabilitation, education, and mental health service providers. The

staff also develops and provides information for public policy initiatives.
8-4 NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Connecticut

Building Research Capacity through Collaboration among American

Indian Tribes in Connecticut and Rhode Island

Mashantucket Pequot Tribal Nation

1 Matt’s Path

Mashantucket, CT 06339

vellien@mptn-nsn.gov fwilkins-turner@mptn-nsn.gov

Principal Investigator: Valerie Ellien, PhD CRC

Public Contact: 860/396-2105; Fax: 860/396-2282

Project Number: H133A031706

Start Date: November 01, 2003

Length: 60 months

NIDRR Officer: Delores Watkins

NIDRR Funding: FY 03 $294,057; FY 04 $336,824; FY 05 $349,984

Abstract: This project builds capacity among four American Indian Tribes to improve the quality of health

and disability service information available for Tribes in Connecticut and Rhode Island. Four objectives

achieves this goal: (1) to investigate access to, and acceptance rates for VR services, types of services

provided, and VR costs for American Indians with disabilities; (2) to ensure the optimal collaboration of

Connecticut and Rhode Island Indian Tribes and others in disability and rehabilitation research, (3) to

maximize potential for recruitment of American Indian researchers; and (4) to investigate and evaluate the

participation of American Indians in disability and rehabilitation research activities and direct service delivery,

and determine to what extent participation leads to improved VR outcomes. All staff was trained in the

Participatory Action Research Model, and Culturally Appropriate Research Methodology utilizing the

expertise of the American Indian Rehabilitation Research and Training Center at Northern Arizona University. An experienced senior rehabilitation researcher is used as mentor to the Research Coordinator, through

development of two surveys for data collection. Two graduate students analysis the data and served as

mentors for the Research Tech (Tribal Members) who are hired to collect the data within their own communities. Data results are shared with each of the four participating tribes (Mashantucket Pequot, Eastern

Pequot, Schaghticoke, and Narragansett) and with the Connecticut Bureau of Rehabilitation Services

through the Advisory Council of the Mashantucket Pequot Vocational Rehabilitation Program.
NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training 8-5

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Illinois

Center for Strategic Capacity Building on Minorities with Disabilities

Research

University of Illinois/Chicago

Department of Disability and Human Development

1640 West Roosevelt Road

Chicago, IL 60608

http://www.uic.edu/orgs/empower

Principal Investigator: Fabricio E. Balcazar, PhD 312/413-1646

Public Contact: 312/413-1806 (V); 312/413-0453 (TTY); ; Fax: 312/413-2918

Project Number: H133A040007

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 04 $600,000; FY 05 $600,000

Abstract: The Center for Capacity Building on Minorities with Disabilities Research (CBMDR) increases

the capacity of community-based organizations (CBOs like Centers for Independent Living and other

agencies) serving minorities with disabilities and State Vocational Rehabilitation Agencies (VR) to involve

consumers in identifying service needs and developing improvement strategies through program evaluation

research. The CBMDR center utilizes participatory research methodologies to promote organizational

change and culturally appropriate services. The Centerua:’s mission is to accomplish this by developing

long-term relationships with CBOs and VR agencies, conducting participatory research and demonstration

projects, engaging in active dissemination efforts, and providing state-of the art training and technical assistance to professionals and researchers in the field. The center primarily targets agencies serving African

Americans, Latinos, and Native Americans with disabilities-although participating organizations may serve

additional minority groups.
8-6 NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Louisiana

Rehabilitation Research Institute for Underrepresented Populations

(RRIUP)

Southern University A&M College

Department of Rehabilitation and Disability Studies

229 Blanks Hall

Baton Rouge, LA 70813

kundusubr@aol.com

Principal Investigator: Alo Dutta, PhD

Public Contact: Madan Kundu, PhD 225/771-2819; Fax: 225/771-2293

Project Number: H133A031705

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $350,000; FY 04 $350,000; FY 05 $350,000

Abstract: The goal of this project is that of improving the quality and utility of research related to individuals

with disabilities from traditionally underserved racial/ethnic population to enhance knowledge and awareness

of issues related to these populations, to help maximize the full inclusion and integration of individuals with

disabilities into society, and to improve the effectiveness of services authorized under the Rehabilitation Act.

The objectives of this project are: (1) to expand the existing and proven work alliance of three minority and

two non-minority entities, e.g., Southern University, University of Hawaii at Manoa, Crownpoint Institute of

Technology, University of Illinois at Urbana-Champaign, and Independent Living Research Utilization

respectively, for strengthening the disability-related multicultural research framework and improving longterm rehabilitation outcomes of culturally diverse groups; (2) to investigate, evaluate, and modify five measures to assess the capacity and competence of the disability and vocational rehabilitation workforce to

provide quality services to individuals with disabilities from traditionally underserved racial and ethnic

populations; (3) to investigate and develop culturally appropriate research capacity and infrastructure

building techniques to ensure the optimal participation of minority entities and Indian tribes in disability and

rehabilitation research; and (4) to develop and evaluate outreach, recruitment, training, reinforcement,

retention, and dissemination strategies to enhance participation of students and investigators from traditionally underserved populations as rehabilitation researchers, administrators, and educators.
NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training 8-7

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

New York

Toward Equity: Innovative, Collaborative Research on Interpreter

Training, DBT, and Psychological Testing

University of Rochester

Department of Psychiatry; Deaf Wellness Center

300 Crittenden Boulevard

Rochester, NY 14642

Robert_Pollard@urmc.rochester.edu

http://www.urmc.rochester.edu/dwc/scholarship/Equity.htm

Principal Investigator: Robert Pollard, PhD

Public Contact: 585/275-3544; Fax: 585/273-1117

Project Number: H133A031105

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: Bonnie Gracer

NIDRR Funding: FY 03 $299,900; FY 04 $299,848; FY 05 $299,985

Abstract: The research activities of this project focus on three thematic categories: mental health interpreting, dialectical behavior therapy, and psychological testing. The interpreter training project builds upon the

Deaf Wellness Center’s (DWC) prior innovations in interpreter training and applies them to four geographically dispersed urban settings. A team of experts in the mental health interpreting field employs the DWC’s

demand-control schema approach and implements a five-month program of training and supervision with a

local interpreter pool. Dialectical behavior therapy (DBT) is a highly structured treatment approach focusing

on emotional regulation and behavioral self-control. The three-part DBT project adapts DBT materials and

methods to maximize treatment access and efficacy with three deaf consumer populations: those with

language skills, those with limited language, and those with comorbid psychiatric and substance abuse

problems. The Signed Paired Associates Test and the ASL Stories Test are tests of verbal learning and

memory for sign language users. The extensive data that exists at the DWC regarding the tests’ psychometric properties and clinical utility implications are analyzed. This research has implications for the assessment

of dementias, retardation, learning disabilities, etc. A second testing project is the development of a psychosis symptom rating scale. The goal is to produce a tool that clinicians can employ to reliably and validly

identify the nature and severity of psychotic symptomatology in deaf individuals. Finally, the project includes

a psychological testing casebook, written based on reviews of hundreds of DWC psychological testing case

files. Most of the studies are multi-site, collaborative ventures.
8-8 NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training

Disability and Rehabilitation Research Projects Disability and Rehabilitation Research Projects

Texas

Minority Scholar/Champion Research Training Project

Texas Southern University

3100 Cleburne Avenue

Houston, TX 77004

http://www.tsu.edu/academics/continue/research/index.asp

Principal Investigator: Irvine E. Epps, EdD 713/313-7224

Public Contact: Darrell K. Simmons, Project Coordinator 713/313-7753; Fax: 713/313-7579

Project Number: H133A031704

Start Date: December 01, 2003

Length: 60 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $350,000; FY 04 $349,655; FY 05 $349,889

Abstract: The Minority Scholars/Champions Research Training Project develops, implements, and evaluates the effectiveness of a train-the-trainer “Scholar/Champion” model to facilitate increased and improved

vocational rehabilitation (VR)/disability research among the targeted Historically Black Colleges and Universities (HBCUs). More specifically, the project develops an innovative research infrastructure of institutional

“cores” that partner an HBCU, Texas Southern University (TSU), with a majority research institution,

Baylor College of Medicine (BCM). Together, these partner institutions create a collaborative research

infrastructure that increases research capacity and helps build an institutional research infrastructure at five

additional HBCUs in Texas. These “cores” are: (1) the Administrative, Planning, and Evaluation Core

directs the Center, selects Center participants, and supervises evaluation of all project activities, budgets,

and reports; (2) the Training Core uses innovative methods of onsite and off-site training to recruit, support,

and mentor minority investigators in the areas of research design, development, and implementation, including analysis of racial and cultural factors related to VR/disability research; (3) the Community Collaboration

and Dissemination Core partners with communities and VR/disability agencies to engage individuals with

disabilities in research and training, using a model of participatory action-oriented research, and disseminates

culturally-sensitive information related to VR/disability research to community groups, agencies, and VR/

disability researchers; and (4) the Research Core works with the HBCU Scholar/Champions to conduct

innovative and rigorous pilot research projects as well as write fully developed research proposals that

address racial disparities in VR/disability research.
NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training 8-9

Fellowships (Merit) Fellowships (Merit)

Illinois

Body Mass Index and Disability In Older Adults: The Health and

Retirement Study

Xiaoxing He, MD, MPH

676 North St. Clair Street, Suite 200

Chicago, IL 60611-3059

xing@northwestern.edu

Principal Investigator: Xiaoxing He, MD, MPH

Public Contact: 312/695-1811; Fax: 312/695-0951

Project Number: H133F030023

Start Date: September 01, 2003

Length: 12 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $45,000

Abstract: This project conducts focused secondary analyses of public data from the Health and Retirement

Survey (HRS). The HRS data collection is sponsored by the National Institute on Aging and conducted by

the Institute for Social Research at the University of Michigan, Ann Arbor. Designed to investigate health

outcomes, retirement decisions, and economic security during retirement, the HRS targeted communitydwelling U.S. adults who were born between 1931 to 1941. In-home interviews were conducted in English

or Spanish in 7,702 households (82.0% response rate), yielding 12,652 participants at baseline 1,992.

Follow-up telephone interviews were conducted every two years through 2000. Vital status was determined

through the National Death Index and household contacts. The analyses address major public health concerns with obesity, obesity-related disability, and physical inactivity. The specific study objectives are: (1) to

determine the relationship between body-mass index, physical activity, overall health, and physical functioning; (2) to examine changes in body-weight from 1992 to 2000 among adults in late middle age and associated factors; and (3) to explore racial/ethnic differences on patterns of physical activity and how much of the

differences can be explained by socioeconomic, and health status.
8-10 NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training

Fellowships (Merit) Fellowships (Merit)

Iowa

Understanding Ethical Decision-Making and Behaviors: An Important

Prelude to Improved Service Delivery and Employment Outcomes

Jodi L. Saunders, PhD

University of Iowa

354 N. Lindquist Center

Iowa City, IA 52242

jodi-saunders@uiowa.edu

Principal Investigator: Jodi L. Saunders, PhD

Public Contact: 319/335-5278; Fax: 319/335-5291

Project Number: H133F030016

Start Date: July 01, 2003

Length: 12 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $45,000; FY 04 $0 (No-cost extension through 3/31/2005)

Abstract: The purpose of the study is to examine the ethical decision-making of rehabilitation counseling

students and professionals. The study has both quantitative and qualitative components. The quantitative

aspect is designed to examine cognitive complexity, five personality dimensions, and moral reasoning of

students and professionals in rehabilitation counseling with various levels of experience (novice, experienced,

and expert). Descriptive analyses, regression analyses, and analysis of variance are conducted in this

qualitative aspect of the study. Structural equation modeling is used to examine the hypothesized relationship

among the variables identified in this study in an attempt to transform a theory into a model that can be

statistically tested. The second aspect of the study is a qualitative approach to understanding ethical decision-making. Individuals with various levels of experience (novice, experienced, and expert) are asked to

process ethical dilemmas “out loud” and the actual cognitive process of ethical decision-making behavior is

analyzed. As a result, the outcome of this study provides both quantitative and qualitative data regarding

ethical decision-making and provides valuable information in regard to the development of effective curricula, interventions, and strategies for improving the skills of service providers and the services and outcomes they provide to people with disabilities.
NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training 8-11

Fellowships (Merit) Fellowships (Merit)

New York

Journal Writing Intervention in Alleviating Psychological Distress of

Korean Mothers of Children with Developmental Disabilities

Su-Je Cho, PhD

75 Oceana Drive, East Unit 1G

Brooklyn, NY 11235

scho@fordham.edu

Principal Investigator: Su-Je Cho, PhD

Public Contact: 718/646-8255; Fax: 212/636-6452

Project Number: H133F030018

Start Date: July 01, 2003

Length: 12 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $45,000; FY 04 $0 (No-cost extension through 8/31/2005)

Abstract: This project investigates the effects of a journal writing intervention on Korean-American mothers of children with developmental disabilities. Fifty Korean-American mothers who have children with

developmental disabilities diagnosed within the year participate. Based on pretest results, the participants

are randomly assigned to either the experimental or the control group. The experimental group receives a

journal notebook and written instructions designed to help them write about stressful events associated with

their child’s disability while the control group is given written instructions for writing about trivial events. All

returned journal notebooks are transcribed verbatim, translated, and analyzed to explore if any specific

items in the journal writing instructions are more effective or any modification is necessary in the instructions.
8-12 NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training

Fellowships (Merit) Fellowships (Merit)

New York

The Practice of a Functional Bimanual Task By Children With

Hemiplegic Cerebral Palsy

Joanne Valvano, PhD

Physical Therapy Program

4200 East Ninth Avenue, C244

Denver, CO 80262

joanne.valvano@uchsc.edu

Principal Investigator: Joanne Valvano, PhD, PT

Public Contact: 303/372-9545; Fax: 303/372-9016

Project Number: H133F030020

Start Date: September 01, 2003

Length: 12 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 03 $45,000; FY 04 $0 (No-cost extension through 8/31/2005)

Abstract: The project explores the effects of part-task practice on the learning of a bimanual motor skill by

children with hemiplegic cerebral palsy (HCP). HCP is a category of cerebral palsy that primarily affects

motor control in the arm and leg on one side of the body. The bimanual experimental task, in this project,

requires the child to cut a curved line on a paper with an adapted scissors apparatus. The scissors apparatus, operated by the hand affected with HCP, requires a simple tapping movement to open and close the

blades of the scissors. The hand, not affected by HCP, holds and adjusts the position of the paper at the

blades of the scissors, so the child can accurately cut along the line. Part-task practice involves practice of

the scissors tapping component prior to performance of the whole bimanual task. Twelve children with HCP

are assigned to one of the following practice conditions: Part-task practice, part-task practice combined

with whole-task practice, or whole task practice. The dependent variables are the distance cut along the line

for each practice trial and measures of coordination of the taping movements, derived from the displacement

of the scissors apparatus. The effects of part-task practice are also examined in 12 children with typical

development, to aid in interpretation of the performance by children with HCP.
NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training 8-13

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Clinician Researchers and Engineers: Advanced Rehabilitation Research

Training

Marquette University

Orthopaedic and Rehabilitation Engineering Center

735 North 17th Street; PO Box 1811

Milwaukee, WI 53201

depps@mcw.edu

http://www.orec.org

Principal Investigator: Gerald F. Harris, PhD 414/288-0698

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133P040008

Start Date: September 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: This program provides advanced education and training in rehabilitation research to selected

engineers and clinician researchers. The overall goal is to develop expertise, enthusiasm, and productivity in

rehabilitation research which results in an increase in the number of rehabilitation-trained physicians and

engineers. Fellows are trained to conduct independent transdisciplinary research on problems related to

disability and rehabilitation. The specific goal is produce productive career researchers. The program is

specifically designed to give the postdoctoral trainees the skills needed to become independent rehabilitation

researchers. The postdoctoral trainees experience a program designed to provide each candidate with a

unique set of capabilities to succeed as a rehabilitation researcher. The capstone experience for the

postdoctoral trainees is the submission of an extramural research proposal. Three research areas have been

selected that provide opportunities to participate in advanced-level research: motion analysis, spasticity, and

accessible medical instrumentation. Four clinical areas give participants clinical experiences to link to their

research experiences: spasticity management, pain management, spinal cord injury, and motion analysis. As

part of the professional development of the postdoctoral trainees and to increase the exposure to rehabilitation research, cross-disciplinary teaching is encouraged. At the completion of the program, all trainees have

completed a directed independent research project, written and submitted scientific manuscripts, prepared a

complete extramural grant proposal, and gained experience in managing a functional research team.
8-14 NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

California

Advanced Rehabilitation Research Program: Ed Roberts Fellowship in

Disability Studies

University of California

IURD

104 Wheeler Hall MC 1870

Berkeley, CA 94720-1870

sschweik@uclink.berkeley.edu

http://www-iurd.ced.berkeley.edu/Press/2003-02-12disability-studies-fellowship.htm

Principal Investigator: Susan Schweik

Public Contact: 510/642-4874 (V); 510/549-1865; 510/913-5791; Fax: 510/643-9576

Project Number: H133P020009

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Other Funding: FY 04 $150,000

Abstract: This program trains scholars who have PhD, MD, or other advanced professional degrees,

conferred in the last five years, to be leaders in disability studies and rehabilitation research, teaching and

mentorship. Based at the University of California, Berkeley, a San Francisco Bay area-wide consortium of

universities, research institutes, and disability agencies recruits people who want to broaden their theoretical

outlook and their disability research methodological skills. In particular, the project recruits scholars with

significant disabilities from minority groups who have not had the opportunity for collaborative crossdisciplinary research study of disability that includes social science and the humanities. The project supports

three nine-month-long (September to May) Ed Robert Postdoctoral Fellowships a year for each of the five

program years. Fellows devote their full-time effort to Fellowship activities on site. Funding includes a

stipend and travel funds.
NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training 8-15

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Florida

Interdisciplinary Rehabilitation Research Post-Doctoral Program

University of Florida

Department of Occupational Therapy

P.O. Box 100164

Gainesville, FL 32610-0164

wmann@hp.ufl.edu

http://www.hp.ufl.edu/rehabsci/

Principal Investigator: William C. Mann, PhD

Public Contact: 352/392-2617; Fax: 352/846-1042

Project Number: H133P020005

Start Date: August 01, 2002

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000

Abstract: This project addresses the shortage of rehabilitation researchers through an interdisciplinary

postdoctoral training program in rehabilitation research. The focus is on recruiting and training postdoctoral

fellows with backgrounds in professions of high need, specifically rehabilitation engineering, physical therapy,

and occupational therapy. There is also a strong focus on recruiting members of groups that have been

traditionally underrepresented in rehabilitation research positions. The participating faculty for this program

have large funded programs of rehabilitation research and also have considerable experience in serving as

mentors for advanced research training. The program offers postdoctoral fellowships from two to three

years to qualified individuals interested in rehabilitation research. Postdoctoral fellows focus in an area

related to one of the levels of these models: neurological rehabilitation, rehabilitation engineering, and

rehabilitation outcomes research.
8-16 NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training

University of Illinois at Chicago

Department of Disability and Human Development; College of Health and Human Development Sciences

1640 West Roosevelt Road

Chicago, IL 60608-6904

theller@uic.edu

http://www.uic.edu/dhd

Principal Investigator: Tamar Heller, PhD

Public Contact: 312/413-1537; Fax: 312/996-6942

Project Number: H133P000005

Start Date: April 01, 2000

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $150,000; FY 01 $150,000; FY 02 $150,000; FY 03 $150,000; FY 04

$150,000

Abstract: This project provides an intensive interdisciplinary postdoctoral training program for disability

and rehabilitation research scholars. The program combines immediate immersion in an ongoing research

program with a focused didactic training experience, providing trainees with knowledge of the critical values,

current issues, and innovative approaches in contemporary disability research. The training is offered

through a cooperative effort of three units within the College of Health and Human Development Sciences:

the Department of Disability and Human Development, Department of Occupational Therapy, and the

Department of Physical Therapy. These departments have an established record of successful collaboration

in advanced training, including creating the Interdisciplinary in Disability Studies at UIC, a unique interdisciplinary doctoral program that addresses the multidimensional nature of disability. A central theme of this

program is that the current fragmentation of knowledge regarding disability can be rectified only by preparing future scholars and researchers who have a coherent, integrated, and in-depth knowledge of the multidimensional nature of disabilities. All three academic units offering this advanced research training have senior

faculty with established, ongoing research programs capable of guiding postdoctoral training in three specialized content areas of disability research: disability measurement, disability experience, and disability service

and policy.
NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training 8-17

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Advanced Rehabilitation Research Training Project in Rehabilitation

Services Research

Northwestern University

Rehabilitation Institute Research Corporation

Center for Rehabilitation Outcomes Research

345 East Superior Street

Chicago, IL 60611

a-heinemann@northwestern.edu

http://www.ric.org/research/fellowships.php

Principal Investigator: Allen W. Heinemann, PhD

Public Contact: 312/238-2802; Fax: 312/238-2383

Project Number: H133P030002

Start Date: July 01, 2003

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: This project develops a five-year fellowship program in rehabilitation-related health services

research at Northwestern University’s Institute for Health Services Research and Policy Studies and the

Department of Physical Medicine and Rehabilitation. It uses available expertise and collaborators to train

postdoctoral fellows in rehabilitation health services research. Over two years the program includes course

work, a practicum, original research, and grant writing. Fellows new to health services research have six

core courses, as well as the two additional courses for all fellows. The first year concentrates on beginning

Masters in Public Health (MPH) courses. The second year includes intermediate MPH course work plus

electives. Each fellow is expected to develop an individual research project by the end of the first training

year, a publishable article by the end of the first year, and two articles by the end of the second year, in

addition to submitting at least one grant application related to the research activity.
8-18 NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Illinois

Rehabilitation Science for Basic Scientists & Engineers: An Advanced

Training Program

Northwestern University

Rehabilitation Institute of Chicago

345 East Superior, Room 1406

Chicago, IL 60611-4496

Principal Investigator: W. Zev Rymer, MD, PhD

Public Contact: 312/238-3919; Fax: 312/238-2208

Project Number: H133P040007

Start Date: May 01, 2004

Length: 60 months

NIDRR Officer: Thomas Corfman

NIDRR Funding: FY 04 $149,625; FY 05 $149,922

Abstract: The goal of this program is to increase the number of PhD engineers and basic scientists trained

to perform research aimed at solving problems of people with disabilities. To meet this objective, the project

trains postdoctoral scientists in three areas of special expertise: musculoskeletal biomechanics;

neurorehabilitation; and prosthetics, orthotics, and biomaterials. Targeted technical training is coordinated

with intensive clinical instruction and experience. Postdoctoral trainees, including scientists and engineers

from minority or disability groups, are recruited by regional and national advertising and via the Internet.

Many training faculty are based within the Rehabilitation Institute of Chicago, providing access to active

clinical rehabilitation programs, and interaction both with clinical faculty and people with disabilities.
NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training 8-19

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Massachusetts

An Integrated Rehabilitation Engineering Research Training Program

Boston University

44 Cummington Street

Boston, MA 02215

jcollins@bu.edu

Principal Investigator: James J. Collins, PhD

Public Contact: 617/353-0390; Fax: 617/353-5462

Project Number: H133P990003

Start Date: February 01, 1999

Length: 60 months

NIDRR Officer: Robert J. Jaeger, PhD

NIDRR Funding: FY 99 $149,915; FY 00 $149,915; FY 01 $149,915; FY 02 $149,915; FY 03

$149,915; FY 04 $0 (No-cost extension through 1/31/2005)

Abstract: The goal of this project is to establish a clinically oriented, scientifically grounded educational

program for training biomedical engineering (BME) postdoctoral fellows in rehabilitation engineering. The

overall objective of the program is to produce biomedical engineers who are capable of communicating and

interacting with physician investigators in a significant and meaningful manner, and who are capable of

defining and solving clinically relevant problems in rehabilitation engineering. The specific objectives of this

project are: (1) to establish a core faculty and administrative structure for the training program; (2) to

provide BME postdoctoral fellows with the opportunity to participate in clinical educational rotations in

physical medicine and rehabilitation (PM&R) and geriatrics; (3) to provide BME postdoctoral fellows and

medical trainees in geriatrics or PM&R with the opportunity to collaborate on clinically relevant research

projects; and (4) to establish a rehabilitation engineering curriculum that includes didactic sessions on clinical

research methodology, as well as a seminar series to expose trainees to leaders in the field and develop their

own expertise in giving scientific presentations. Accordingly, this program trains a new cadre of biomedical

engineers with the knowledge and skills to develop innovative rehabilitation technologies that directly benefit

individuals with disabilities.
8-20 NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Massachusetts

Advanced Research Training Program in Psychiatric Rehabilitation

Boston University

Sargent College of Health and Rehabilitation Sciences

940 Commonwealth Avenue

Boston, MA 02215-1303

zlatka@bu.edu; ellison2@bu.edu

http://www.bu.edu/SARPSYCH

Principal Investigator: Zlatka Russinova, PhD; Marsha Ellison, PhD

Public Contact: 617/353-3549; Fax: 617/353-7700

Project Number: H133P020011

Start Date: September 01, 2002

Length: 60 months

NIDRR Officer: Cate Miller, PhD

NIDRR Funding: FY 02 $149,984; FY 03 $149,991; FY 04 $150,000

Abstract: This project prepares a cadre of six advanced-level researchers in the area of psychiatric rehabilitation. The recruitment efforts target consumers, with the expectation that one or more consumers will be

selected for the training program. Six fellows are recruited over the course of the project. The training

program consists of two consecutive cycles of 2.25-year postdoctoral fellowships in psychiatric rehabilitation research. In order to optimize the training experience, three fellows are in residence during each cycle.

While the fellowship is designed to provide broad-based intensive training in psychiatric rehabilitation

research, the six fellows develop a particular expertise in conducting recovery-oriented research, given the

current research profile of the Center for Psychiatric Rehabilitation at Boston University. Through a variety

of training modalities fellows acquire competencies in the following areas: psychiatric rehabilitation and

recovery oriented systems, recovery framework and consumer issues, research design/methodology,

statistics, computer literacy, conduct of applied rehabilitation research, and grant and professional writing.e:
NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training 8-21

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Michigan

The UMHS/MSU/AACIL Rehabilitation Research Training Program

University of Michigan

Department of Physical Medicine and Rehabilitation; Rehabilitation Psychology

D4100 MPB; 1500 East Medical Center Drive

Ann Arbor, MI 48109-0718

dgtate@umich.edu

http://www.med.umich.edu/pmr/arrtp/

Principal Investigator: Denise G. Tate, PhD

Public Contact: 734/936-7052; Fax: 734/936-7048

Project Number: H133P030004

Start Date: September 01, 2003

Length: 60 months

NIDRR Officer: Unknown

NIDRR Funding: FY 03 $150,000; FY 04 $150,000

Abstract: The University of Michigan Health System (UMHS), Department of Physical Medicine and

Rehabilitation, and the Ann Arbor Center for Independent Living (AACIL) with consulting faculty from

Michigan State University (MSU) and Wayne State University (WSU) have developed a training program

to train six PhD and ten MD fellows. Training opportunities include the existing research programs funded at

UMHS, the academic doctoral level rehabilitation counseling program at MSU, the multidisciplinary rehabilitation program at WSU, and opportunities for research training at a community-based agency, the

AACIL. Emphasizing the consumer-scientist-practitioner model, this multidisciplinary research training

program utilizes faculty and resources from 3 universities and from the AACIL to train 16 new fellows.

Fellows and resident trainees may select from a curriculum that focuses on three content areas: (1) health

rehabilitation outcomes; (2) independent living and community re-integration; and (3) social/environmental

aspects of rehabilitation, including assistive technology.
8-22 NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New Jersey

Advanced Rehabilitation Research Training Center on Outcomes and

Intervention Effectiveness

University of Medicine & Dentistry of New Jersey

Department of Physical Medicine and Rehabilitation, B261

150 Bergen Street

West Orange, NJ 07103

mjohnston@kmrrec.org

http://www.kmrrec.org/KM/careers/outcomes_fellows.php3

Principal Investigator: Mark V. Johnston, PhD 973/243-6810

Public Contact: Mark V. Johnston, PhD 973/243-6810; Fax: 973/243-6963

Project Number: H133P020012

Start Date: March 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $149,847; FY 04 $149,500

Abstract: This postdoctoral research training program develops researchers who advance knowledge of

the impact of interventions—medical, activity-based, social-psychological, and environmental—on outcomes for persons with physical and neurological disabilities. The program emphasizes the actual conduct of

research, leading to publication. Outcomes-related study topics include research on prognosis and severity

adjustment, treatment guidelines, quality improvement strategies, cost-effectiveness, and issues of health

policy. Fellows typically begin by participating in one or more research projects suggested by their mentor

and studying to improve their knowledge and skills. Fellows also develop their own research grant proposals. The program is supported by the University of Medicine and Dentistry of New Jersey/New Jersey

Medical School and the Kessler Medical Rehabilitation Research and Education Corporation.
NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training 8-23

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

New York

Advanced Rehabilitation Research Training

Mount Sinai School of Medicine

One Gustave L. Levy Place

New York, NY 10029-6574

mary.hibbard@mssm.edu

http://www.mssm.edu/tbinet

Principal Investigator: Mary R. Hibbard, PhD

Public Contact: 212/659-9374; Fax: 212/348-5901

Project Number: H133P000001

Start Date: September 01, 2000

Length: 60 months

NIDRR Officer: Margaret Campbell, PhD

NIDRR Funding: FY 00 $138,006; FY 01 $140,382; FY 02 $140,341; FY 03 $144,215; FY 04

$149,949

Abstract: This project provides advanced rehabilitation research training to nine postdoctoral psychology

fellows. Each fellow participates in the ongoing research of the NIDRR-funded Rehabilitation Research and

Training Center (RRTC) on Community Integration of Individuals with Traumatic Brain Injury. The goals of

the training are to: (1) increase the number of researchers in the field of rehabilitation, (2) enhance knowledge of rehabilitation research, (3) disseminate research findings within the professional consumer communities, and (4) train fellows to become part of an interdisciplinary research team. The RRTC is a model

program of participatory action research that focuses on four core research areas: quality of life/outcome

measurement, disability over the life span, models of community integration, and psychosocial challenges of

persons with disabilities.
8-24 NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Texas

Interdisciplinary Rehabilitation Research Training Program

University of Texas Medical Branch

301 University Boulevard

Galveston, TX 77555-1137

kottenba@utmb.edu

http://www.sahs.utmb.edu/rehab/

Principal Investigator: Kenneth J. Ottenbacher, PhD

Public Contact: Beth King 409/747-1637; Fax: 409/747-1638

Project Number: H133P040003

Start Date: July 01, 2004

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 04 $145,686; FY 05 $145,686

Abstract: This ARRT program provides postdoctoral research opportunities to qualified individuals interested in clinical and academic careers related to rehabilitation research. Three postdoctoral fellows must

plan, conduct and disseminate research in one of the following areas: cognitive/neurological rehabilitation,

applied physiology/biomechanics of rehabilitation, and geriatric rehabilitation. Each rehabilitation research

fellow selects one of the three research areas and conducts clinical investigations for up to three years.

Outcomes include published research studies, presentations at national scientific meetings, submission of

grant proposals, completion of research related courses, training in techniques of dissemination, and the

development of interdisciplinary research networks. In addition to participating in clinical research activities,

each fellow completes a series of core courses and directed study related to interdisciplinary research and

the ethics associated with scientific inquiry and the use of human subjects in rehabilitation research. All

fellows participate in a practicum experience involving persons with disabilities and their families/caregivers

organized through the Transitional Learning Center. The activities of each postdoctoral fellow are directed

and monitored by a fellowship supervisor with a demonstrated ability to implement, conduct, and disseminate the results of research investigations contributing to the advancement of rehabilitation science.
NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training 8-25

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Texas

Advanced Rehabilitation Research Training

Baylor College of Medicine

Department of Physical Medicine and Rehabilitation

One Baylor Plaza

Houston, TX 77030

drintala@bcm.tmc.edu

http://public.bcm.tmc.edu/pm&r/education/Fellowships/RehabResearch.html

Principal Investigator: Diana H. Rintala, PhD 713/791-1414, ext. 5807

Public Contact: Jacquie Parish 713/797-5940; Fax: 713/797-5982

Project Number: H133P020003

Start Date: October 01, 2002

Length: 60 months

NIDRR Officer: Theresa San Agustin, MD

NIDRR Funding: FY 02 $150,000; FY 03 $150,000; FY 04 $150,000; FY 05 $150,000

Abstract: This program trains postdoctoral fellows in the skills necessary to become independent investigators in rehabilitation. Research training in the Department of Physical Medicine and Rehabilitation is

multidisciplinary in nature, and encompasses the spectrum from basic mechanism to societal integration.

Through this program, fellows develop research expertise in spinal cord injury, stroke, Parkinson’s disease,

amputee rehabilitation, neuropsychological rehabilitation/cognitive neuropsychology, rehabilitation outcomes,

and social policy. The coursework includes topics such as research methodology, statistical methods, ethical

issues, special populations, and scientific writing. The Applied Rehabilitation Research Course complements

the Clinical Scientist Training Program by emphasizing the unique characteristics of research in rehabilitation.

Fellows also participate in other education activities such as the department’s Research, Education, and

Development Seminar and are expected to present and produce documentation for publication on their

independent research and prepare applications for federal funding building on their project for career

development. They also attend, and submit abstracts for presentation at, national professional meetings to

begin to integrate into the greater rehabilitation research community.
8-26 NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Virginia

Advanced Research Training Program

Virginia Commonwealth University

Department of Medicine and Rehabilitation

Box 980542

Richmond, VA 23298-0542

jskreutz@vcu.edu

http://advanced.rehabilitationresearch.com

Principal Investigator: Jeffrey Kreutzer, PhD 804/828-9055

Public Contact: Jennifer Marwitz 804/828-3704; Fax: 804/828-2378

Project Number: H133P040006

Start Date: October 01, 2004

Length: 60 months

NIDRR Officer: Ruth Brannon

NIDRR Funding: FY 04 $150,000; FY 05 $150,000

Abstract: This project is an advanced rehabilitation research training (ARRT) program for individuals with

advanced degrees who are committed to a career in rehabilitation research with a focus on neurobehavioral

recovery and intervention. Training and research activities address brain injury, aneurysms, brain tumors, and

other neurological disorders. Individualized research training plans emphasizing scientific rigor guide fellows’

choices of training activities. Outstanding mentors, didactic experiences, and collaborative and independent

research activities provide the foundation for the VCU ARRT program. Mentors include internationally and

nationally renowned, distinguished scientists from the fields of rehabilitation medicine, neuropsychology,

psychiatry, neurosurgery, and vocational rehabilitation. Core courses on ethics, conduct in scientific research, and grant writing are complemented by grand rounds and graduate courses. All fellows must complete and submit a grant application during the second year of their fellowship.
NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training 8-27

Advanced Rehabilitation Research Training Projects Advanced Rehabilitation Research Training Projects

Wisconsin

Advanced Rehabilitation Research Training for Physicians and

Biomedical Engineers

Marquette University

Orthopaedic and Rehabilitation Engineering Center

735 North 17th Street; P.O. Box 1881

Milwaukee, WI 53201

depps@mcw.edu

http://www.orec.org

Principal Investigator: Gerald F. Harris, PhD 414/288-0698

Public Contact: Deborah Epps, Project Administrator 414/288-0696; Fax: 414/288-0713

Project Number: H133P020004

Start Date: July 01, 2002

Length: 60 months

NIDRR Officer: William V. Schutz, PhD, MSW, MPH

NIDRR Funding: FY 02 $84,566; FY 03 $144,506; FY 04 $148,634; FY 05 $149,186

Abstract: This project develops expertise, enthusiasm, and productivity in rehabilitation research that

results in an increase in the number of rehabilitation-trained physicians and biomedical engineers able to

conduct independent transdisciplinary research on problems related to disability and rehabilitation. The

program is specifically designed to give the postdoctoral trainees the skills needed to become productive

career researchers. The training program utilizes a rehabilitation research team consisting of a focused cadre

of mentors and two postdoctoral fellows (one postdoctoral physician and one postdoctoral biomedical

engineer). The trainees are enrolled in the research training program for 18 months. A total of three physicians and three biomedical engineers participate in this training program over the five-year period.
8-28 NIDRR Program Directory FY 2004 - Capacity Building for Rehabilitation Research and Training

NIDRR Contracts NIDRR Contracts

Virginia

Technical Support for Assessment of Management and Ancillary

Activities of the National Institute on Disability and Rehabilitation

Research

CESSI

6858 Old Dominion Drive, Suite 250

McLean, VA 22101

snewman@cessi.net

http://www.cessi.net

Principal Investigator: Shelia Newman

Public Contact: 703/448-6155; Fax: 703/442-9015

Project Number: ED-00-CO-0079

Start Date: September 07, 2000

Length: 60 months

NIDRR Officer: Joseph A. DePhillips

NIDRR Funding: FY 00 $695,717; FY 01 $245,885

Abstract: This project performs a wide range of technical and support activities for NIDRR, including data

collection and analysis, literature reviews, issue analysis and reports, program management evaluation,

conference planning and support, and development of information and database systems. Task orders

completed and in process have ranged from the design and implementation of a peer review database,

analysis of a standing panel peer review model, analysis of intellectual property issues related to technology

transfer, support for the development of NIDRR’s Long-Range Plan, outreach and networking with disability experts, and numerous meetings and conferences. Two major tasks are the Design and Conduct of the

Program Review Process and Technical Support for the Interagency Committee on Disability Research

(ICDR). Program Review is designed to assess the level of grantee excellence in administration, scientific

rigor, relevance and productivity, and capacity building. Each year CESSI staff arrange and conduct quarterly meetings of the ICDR and meetings of the Subcommittees on Disability Statistics, Medical Rehabilitation, and Technology. An Internet “gateway” for federally funded disability research is under development

and staff prepares reports to Congress and other reports as needed.
State Technology Assistance

This program, funded under Title I of the the Assistive Technology Act of 1998, supports consumer-driven Grants to States. Currently there are 56 projects that provide

statewide, comprehensive, technology-related assistance for individuals with disabilities

of all ages. The purpose of the program is to increase and improve access to assistive

technology devices and services through public awareness and information, advocacy,

outreach, technical assistance and training, and interagency coordination.

Contents

Assistive Technology Technical Assistance Projects ................................................................................. 3

Alternative Financing Programs ............................................................................................................... 5

State Technology Assistance Projects.................................................................................................... 15

NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-3

Assistive Technology Technical Assistance Projects Assistive Technology Technical Assistance Projects

North Carolina

Assistive Technology Act (AT Act) Technical Assistance Program (TA)-

Data Collection Program

RTI International

Center for Research in Education

3040 Cornwallis Road; P.O. Box 12194

Research Triangle Park, NC 27709-2194

cat@rti.org

http://www.rti.org

Principal Investigator: Christene A. Tashjian

Public Contact: 919/541-6128; Fax: 919/541-5849

Project Number: H224B030001

Start Date: October 01, 2003

Length: 36 months

NIDRR Officer: Roslyn Edson

NIDRR Funding: FY 03 $427,891; FY 04 $427,891; FY 05 $427,891

Abstract: The primary purposes of this grant are to continue implementation and maintenance of the

web-based data collection system for AT Act state grantees and to develop and implement a similar

system for Protection and Advocacy (P&A) grantees. Specific project activities include: (1) maintaining and supporting the existing web-based data collection system for the AT Act state grantees; (2)

developing an annual program performance reporting form for P&A grantees in collaboration with

NIDRR and a work group of stakeholders; (3) developing, implementing, and maintaining a webbased data collection system for the P&As based on the new form; (4) training grantees in the use of

the data collection instruments and systems; (5) writing analytical reports based on the data collected

from the grantees and writing an annual report on grantees’ performance and outcomes, including

interpretations of findings; (6) identifying and evaluating successful strategies that can be linked to

increased access to and provision of AT based on the data collected from the grantees, including

analyses of use of AT by individuals with disabilities and national trends related to AT use by individuals with disabilities; (7) examining the extent to which the grantee data address the intended purposes

of the data collection activities; and (8) disseminating the reports generated from grant activities to the

primary stakeholders of the AT Act grant program and other relevant groups. This project is a collaboration of RTI, Neighborhood Legal Services, and InfoUse.
9-4 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

Assistive Technology Technical Assistance Projects Assistive Technology Technical Assistance Projects

Virginia

Technical Assistance Project

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)

1700 North Moore Street, Suite 1540

Arlington, VA 22209

resnata@resna.org

http://www.resna.org/taproject

Principal Investigator: M. Nell Bailey

Public Contact: 703/524-6686, ext. 305 (V); 703/524-6639 (TTY); Fax: 703/524-6630

Project Number: H224B020001

Start Date: October 01, 2002

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 02 $525,000; FY 03 $525,000; FY 04 $525,000

Abstract: This project assists the 56 state Assistive Technology Act (AT Act) grantees in reducing

barriers and increasing access to AT devices and services for consumers with disabilities of all ages

through capacity building initiatives. The needs of the state AT Act grantees are continually assessed

and plans are tailored to provide timely, responsive, and proactive technical assistance to meet those

needs. Delivery strategies include onsite visits, training by peers (States Helping States) and expert

consultants, national meetings focused on project implementation issues, publication development on

grantees’ impact, models of best practice and policy issues, online services, and other communication

tools. The project maintains a content-rich, accessible web site that serves as the grantees’ prime

resource for information dissemination. Areas of the web site include a Policy Information Pipeline,

links to other related resources, and a private area designated specifically for grantees to share and

exchange information. A reference library on the web contains publications and documents that can be

easily accessed and downloaded.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-5

Alternative Financing Programs Alternative Financing Programs

Georgia

Credit-Able, Georgia’s Alternative Financing Program

Georgia Department of Labor

Vocational Rehabilitation Program

AT Unit Tools for Life

1700 Century Circle, Suite 300

Atlanta, GA 30345

info@gatfl.org

http://www.gatfl.org

Principal Investigator: Joy Kniskern 404/638-0387

Public Contact: Rebecca Roper 800/497-8665 (V, in state only); 404/638-0384 (V); 404/638-0385

(TTY); Fax: 404/486-0218

Project Number: H224C030009

Start Date: October 01, 2003

Length: 12 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $1,563,307; FY 04 $0 (No-cost extension through 9/30/2005)

Abstract: The Credit-Able Alternative Financing Program represents the efforts of state agencies and

local organizations to make low-cost financing on assistive technology available to the citizens of

Georgia. Since Georgia does not have a state credit union for residents, Tools for Life partnered with a

number of groups committed to improving economic literacy and self-sufficiency through affordable

financial services for citizens. These groups formed The GettingAhead Association (TGA) two years

ago to address statewide needs for financial education and support among many different populations.

Georgians with disabilities can benefit to a significant degree from financial counseling as an option to

increase the likelihood of their success in fulfilling responsibilities as borrowers. Regardless of age,

economic status, education, or geographic location Georgians with disabilities can join TGA for a

$5.00 membership fee, covered by this grant or by a sponsor, which then offers them opportunities to

join one of several participating credit unions. MACO and Gwinnett Federal Credit Union both serve

the entire state regardless of members’ county of residence, and have online financial services. Tools

for Life and its partners are committed to consumer choice and control of programs like Credit-Able.

As the program matures, expanded opportunities occur in every area of program operations: from

selection of assistive technology, to decisions about whether to pursue a loan, to leadership opportunities on the Credit-Able Advisory Group and Loan Guarantee Review Panel, and TGA board or

program staff.
9-6 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

Alternative Financing Programs Alternative Financing Programs

Iowa

Iowa AFP and Telework Loan Program

Iowa Finance Authority

100 East Grand Avenue, Suite 250

Des Moines, IA 50309

sharon.murphy@ifa.state.ia.us

http://www.ifahome.com

Principal Investigator: Michael Tramontina 515/242-4977

Public Contact: Sharon Murphy, Program Administrator 515/242-4990; Fax: 515/242-4957

Project Number: H224C030005

Start Date: October 01, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $482,972; FY 04 $0 (No-cost extension through 9/30/2005)

Abstract: In an effort to assist individuals with disabilities in Iowa, the State, represented by Iowa

Finance Authority, along with The Iowa Able Foundation and The Abilities Fund, administer two

separate loan programs that provide loan guarantees and interest rate buy downs on commercial loans

as well as offering non-guaranteed direct-to-consumer loans. The first loan program allows individuals

with disabilities, their guardians, advocates, and representatives, to obtain home modifications and AT

equipment and services to become more independent and productive. The second loan program gives

individuals with disabilities access to the financial resources necessary to purchase computers, software, peripherals, and other equipment deemed necessary to become employed or self-employed

through a home-based or telework setting. The AFP and Telework programs are administered in a

manner that allows consumers to receive technical assistance throughout the application process, a

timely and fair decision making process, and financial products that best meet the situation and need of

the consumer.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-7

Alternative Financing Programs Alternative Financing Programs

Maryland

The Assistive Technology Guaranteed Loan Program: A Model of

Success

State of Maryland

Department Disabilities; ATGLP

2301 Argonne Drive, T17

Baltimore, MD 21218-1696

loans@mdtap.org

http://www.mdtap.org

Principal Investigator: Michael Dalto, Project Executive Director

Public Contact: Jessica Volmer 410/554-9233; 800/832-4827; Fax: 410/554-9237

Project Number: H224C030015

Start Date: October 01, 2003

Length: 12 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 03 $1,270,981; FY 04 $0 (No-cost extension through 9/30/2005)

Abstract: The Assistive Technology Guaranteed Loan Program (ATGLP) provides loan guarantees

and interest buy-downs for AT loans when the end user is a Maryland resident with a disability. The

project introduces partial principal buy-downs as a more cost-effective alternative to interest buydowns. The project’s partnerships institute innovations that make it a national model including: (1)

multiple lenders providing a choice of options to borrowers and the program, and offering the program

the leverage to negotiate better terms among all lenders; (2) exclusive purchase discounts to borrowers;

and (3) increased income and resources for borrowers to help them afford AT. Benefits InfoSource and

the Benefits Resource Center assist borrowers to use SSI and Social Security work incentives to retain

higher cash benefits, while the Maryland Center for Community Development links borrowers with

service providers to establish Individual Development Accounts to provide matching funds for their

savings set aside for AT purchase. Alternative resources for AT evaluation and training are also offered

through No Boundaries, the Columbia Lighthouse for the Blind, and Learning Independence through

Computers.is:
9-8 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

Alternative Financing Programs Alternative Financing Programs

Michigan

Michigan Assistive Technology Loan Fund

Department of Career Development/Rehabilitation Services

Community Development Division

780 West Lake Lansing Road, Suite 200

East Lansing, MI 48823

miatloanfund@aol.com

http://www.mi-atlf.org

Principal Investigator: Norm DeLisle 517/333-2477

Public Contact: Kathryn Wyeth, Operations Director 517/333-2477, ext. 35; Fax: 517/333-2677

Project Number: H224C030022

Start Date: October 01, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $635,490; FY 04 (No-cost extension through 9/30/2005)

Abstract: Individuals with disabilities in Michigan are the target group of the fund, the goal of which

is that people with disabilities in Michigan are able to obtain, either through loans or through other

means, AT equipment and services. Key objectives for this project are: (1) expand the number of local

disability organizations serving as counseling and intake sites; (2) expand the outreach of the fund to

underserved populations including minorities, people living in economically disadvantaged areas, and

individuals living in rural communities; and (3) approve loans for 75 people with disabilities to enable

them to purchase AT devices and services that will enable them to achieve increased independence.

The Michigan Assistive Technology Loan Fund is a project of the Michigan Department of Career

Development-Rehabilitation Services, the Michigan Disability Rights Coalition (MDRC), United

Cerebral Palsy of Michigan, which administers the fund, several local disability organizations, and the

Financial Health Credit Union of Lansing (FHCU). The loan fund is governed by MDRC’s Board of

Directors, most of whose members have disabilities and is administered by UCP Michigan. A loan

committee composed of people with disabilities who use AT and two bankers approves loan guarantees.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-9

Alternative Financing Programs Alternative Financing Programs

New Mexico

New Mexico Alternative Financing Program (NMAFP)

New Mexico Department of Education

Division of Vocational Rehabilitation

New Mexico Technology Assistance Program (NMTAP)

435 Saint Michaels Drive, Building D

Santa Fe, NM 87505

awinnegar@state.nm.us

http://www.nmtap.com

Principal Investigator: Andy Winnegar, Project Director 505/954-8521

Public Contact: Caroll Cadena 800/866-2253 (V/TTY); 800/659-4915 (TTY); 505/954-8533 (V/

TTY); Fax: 505/954-8562

Project Number: H224C030012

Start Date: October 01, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $1,270,981; FY 04 $0 (No-cost extension through 9/30/2005)

Abstract: The NMAFP program provides statewide outreach to increase awareness of the loan program including accessible electronic and printed information to assist users to seek, find, and obtain

loans for assistive technology needs. The NMAFP provides a low interest and interest buy-down

program that involves a loan guarantee to lower rates and allows higher risk loans. The state of the art

accessibility methods regarding outreach, loan processing, and consumer support services are employed including the use of toll-free telephone consulting, and information navigation and accommodation assistance. NMAFP serves persons with disabilities throughout the state regardless of disability or

age. Employees with disabilities may choose to have an employer seek loans through the NMAFP for

job accommodation needs.
9-10 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

Alternative Financing Programs Alternative Financing Programs

Northern Mariana Islands

Trankilu: A Northern Mariana Islands Alternative Financing Program

Council on Developmental Disabilities

1312 Anatahan Drive,

Capitol Hill P.O. Box 502565

Saipan, MP 96950-2565

straid@cnmiddcouncil.org

http://www.cnmiddcouncil.org

Principal Investigator: Thomas J. Camacho, Project Director

Public Contact: Project Coordinator 670/664-7000; Fax: 670/664-7010

Project Number: H224C030031

Start Date: October 01, 2003

Length: 12 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $508,392; FY 04 $0 (No-cost extension through 9/30/2005)

Abstract: Trankilu (tranquil), a CNMI Alternative Financing Mechanism Program, offers qualified

individuals with disabilities affordable loans to purchase assistive technology, adapted vehicles, and/or

home modifications. Within five years, the goal is to be operating a sustainable $1,000,000 revolving

loan fund and implementing additional programs such as interest buy-down and a loan guarantee.

Trankilu provides assistance to CNMI citizens who wish to build their asset base, financial well being,

and have access to low cost financial service.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-11

Alternative Financing Programs Alternative Financing Programs

Virgin Islands

Virgin Islands Alternative Financing Program

University of the Virgin Islands

Virgin Islands Center for Excellence in Developmental Disabilities

2 John Brewer’s Bay

St. Thomas, VI 00802

wfrancis@uvi.edu; wevans@uvi.edu

http://www.uvi.edu/pub-relations/resource.htm

Principal Investigator: Yegin Habtes 340/693-1323

Public Contact: Wilbert Francis; Wanda Evans 340/693-1189 (Francis); 340/692-1919 (Evans); Fax:

340/693-1325

Project Number: H224C030004

Start Date: October 01, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $635,490; FY 04 $0 (No-cost extension through 9/30/2005)

Abstract: The main mission of this program is to help the approximately 8,000 US Virgin Islands

(USVI) residents with disabilities purchase AT devices and services that may be required for independence in the home, workplace, and community. The USVI has unique cultural, geographic, and

economic barriers that make the acquisition of AT more difficult than in other parts of the United

States. Over 85% of the total population is comprised of a traditionally underrepresented group that is

spread over four islands. While nearly half are “native” islanders, many come from surrounding

islands/countries and represent many diverse cultures. Residents of USVI are not beneficiaries of

public programs that often provide AT (i.e., Medicaid). Financial resources for AT in programs such as

independent living are also very limited. This program is implemented in partnership with community

service organizations, local financial institutions, individuals with disabilities, their family members,

guardians, advocates, and the Virgin Islands University Center for Excellence in Developmental

Disabilities.
9-12 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

Alternative Financing Programs Alternative Financing Programs

Virginia

Alternative Financing Technical Assistance Project

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)

1700 North Moore Street, Suite 1540

Arlington, VA 22209-1903

http://www.resna.org/AFTAP

Principal Investigator: Nancy Meidenbauer

Public Contact: 703/524-6686. ext. 304 (V); 703/524-6639 (TTY); Fax: 703/524-6630

Project Number: H224C030002

Start Date: May 01, 2003

Length: 36 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $726,000; FY 04 $726,000

Abstract: This project supports states in establishing and maintaining Alternative Financing Programs

(AFP). The purpose of the project is to provide technical assistance (TA) to states in developing AFPs

that reduce barriers to the availability of AT and create new sources of funding for AT services and

devices for people with disabilities of all ages. Technical assistance and information dissemination and

utilization activities have been designed in order to achieve the project’s goals. These goals are: (1) to

provide timely, responsive, and proactive TA using a comprehensive model for delivery of TA, and (2)

to address the TA needs of the states currently receiving Title III funds and those states that are in the

process of preparing applications for AFP. The delivery strategies include on-site visits by expert

consultants; a national meeting focused on issues related to developing, implementing, and maintaining

financial loan programs; targeted research publications; and electronic services. A particular focus of

the project is to revise the web-based data collection instruments in use today to increase their usability

and validity in collecting uniform data across state programs. The project works to streamline the data

collection process and analyzes the data collected to highlight trends and determine the outcomes and

impact of the loan programs.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-13

Alternative Financing Programs Alternative Financing Programs

Virginia

Virginia Alternative Financing Program

Virginia Department of Rehabilitative Services

Virginia Assistive Technology System (VATS)

8004 Franklin Farms Drive; P.O. Box K091

Richmond, VA 23288

loanfund@erols.com

http://www.vats.org; http://www.atlfa.org

Principal Investigator: Kenneth Knorr 804/662-9995

Public Contact: Mike Scione 804/662-9993; Fax: 804/662-9478

Project Number: H224C030007

Start Date: October 01, 2003

Length: 12 months

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 03 $4,941,575; FY 04 $0 (No-cost extension through 9/30/2005)

Abstract: This project assists individuals with disabilities and their families, and eligible businesses, to

acquire adaptive technology devices and equipment, to purchase vehicles with modifications, and to

obtain home modifications for accessibility. Funds are also utilized to demonstrate assistive technology

and rehabilitation engineering, assessment services, and short-term equipment loans. Services are also

available at three regional loan application centers. This project is a collaboration of the Virginia

Assistive Technology System and the Assistive Technology Loan Fund Authority.
9-14 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

Alternative Financing Programs Alternative Financing Programs

Washington

Washington Assistive Technology Alternative Financing Project

Washington State Department of Community Trade & Economic Development

3670 Stone Way North

Seattle, WA 98103

fpennell@watf.org

http://www.watf.org

Principal Investigator: Nancy Hanna 360/725-2856

Public Contact: Frances Pennell 206/826-1038; Fax: 206/826-1138

Project Number: H224C030032

Start Date: October 01, 2003

Length: 12 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 03 $635,490; FY 04 $635,490

Abstract: This project provides low interest loans for Washington residents with disabilities for AT

and home and vehicle accessibility modifications. These loans are provided through a direct lending

program operated by The Washington Assistive Technology Foundation (WATF) and through contracts with other commercial lenders potentially including commercial banks, credit unions, and/or

community development financial institutions. Potential borrowers are offered financial counseling and

financial literacy education, information on AT selection, assistance with PASS plan preparation, and

information about, and referral to, appropriate AT professionals and providers. These services are

provided directly by WATF and/or through referral to other state and private entities.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-15

State Technology Assistance Projects State Technology Assistance Projects

Alabama

Alabama Statewide Technology Access and Response Project (STAR)

System for Alabamians with Disabilities

Alabama Department of Rehabilitation Services

2125 East South Boulevard; P.O. Box 20752

Montgomery, AL 36120-0752

tbridges@rehab.state.al.us

http://www.rehab.state.al.us/star

Principal Investigator: Steve Shivers

Public Contact: Ted Bridges 800/782-7656 (V, in state only); 334/613-3480 (V); 334/613-3519

(TTY); Fax: 334/613-3485

Project Number: H224A30009

Start Date: October 01, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $520,670; FY 94 $540,000; FY 95 $580,000; FY 96 $536,900; FY 97

$574,900; FY 98 $710,052; FY 99 $730,000; FY 00 $688,624; FY 01 $516,468; FY 02 $344,312

Abstract: This project addresses nine goals: (1) to establish an organizational structure that maximizes

consumer participation; (2) to facilitate interagency collaboration in the development of policies and

procedures concerning technology services; (3) to maximize consumer participation at all levels of

project activities; (4) to establish a statewide consumer and family network; (5) to develop a statewide

consumer-responsive information and referral system; (6) to develop a public awareness campaign to

elevate the understanding of the benefits and use of technology for people with disabilities; (7) to

develop and provide technology training activities for consumers, their families, professionals, employers, and the general public regarding technology-related issues; (8) to advance positive policy and

funding changes that improve the procurement of and access to technology devices and services; and

(9) to develop and implement a project evaluation system and conduct ongoing needs assessment.
9-16 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Alaska

Assistive Technologies of Alaska

Alaska Department of Labor and Workforce Development

Division of Vocational Rehabilitation

1016 West Sixth, Suite 205

Anchorage, AK 99501

james_beck@labor.state.ak.us

http://www.labor.state.ak.us/at/index.htm

Principal Investigator: Jim Beck

Public Contact: 800/478-4378 (V/TTY, in state only); 907/269-3569 (V/TTY); Fax: 907/269-3632

Project Number: H224A990001

Start Date: July 01, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $563,052; FY 91 $565,205; FY 92 $595,000; FY 93 $748,000; FY 94

$749,298; FY 95 $749,298; FY 96 $693,618; FY 97 $731,618; FY 98 $548,714; FY 99 $368,000; FY

00 $365,809; FY 01 $365,809; FY 02 $365,809; FY 03 $365,809; FY 04 $365,809

Abstract: Assistive Technologies of Alaska (ATA) is a systems change project funded under the

authority of the Tech Act. ATA has worked to establish a statewide, consumer-responsive system to

improve access to AT. The project has responded to the needs of Alaskans with disabilities by creating

training tools and resource documents; establishing a guaranteed loan program; achieving passage of

an AT consumer protection law; and setting up a statewide library system for access to technology. In

the last two years, the project is transitioning services to other permanent programs.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-17

State Technology Assistance Projects State Technology Assistance Projects

American Samoa

American Samoa Assistive Technology Service (ASATS) Project

Division of Vocational Rehabilitation

Department of Human Resources

Pago Pago, American Samoa 96799

edperei@blueskynet.as

Principal Investigator: Pete P. Galea’i

Public Contact: Edmund Pereira, Project Director 011/684/699-1529 (V); 011/684/233-7874 (TTY);

Fax: 011/684/699-1376

Project Number: H224A30014

Start Date: October 01, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $139,200; FY 94 $150,000; FY 95 $150,000; FY 96 $150,000; FY 97

$150,000; FY 98 $210,000; FY 99 $105,000; FY 00 $150,000; FY 01 $105,000; FY 02 $105,000; FY

03 $105,000; FY 04 $105,000

Abstract: This project addresses four goals: (1) identification, training, and support of people with

disabilities to provide direction and guidance to the American Samoa Assistive Technology Project; (2)

development and implementation of a system for individual and program needs assessment for AT; (3)

development and promotion, in collaboration and in partnership with existing agencies, of a consumer

responsive, culturally appropriate assistive technology service-delivery system; and (4) development

and implementation of a model multiagency information, education, and public awareness system.
9-18 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Arizona

Arizona Technology Access Program (AzTAP)

Northern Arizona University

Institute for Human Development

4105 North 20th Street, Suite 260

Phoenix, AZ 85016

jill.sherman@nau.edu

http://www.nau.edu/ihd/aztap

Principal Investigator: Jill S. Oberstein, Project Director

Public Contact: 800/477-9921 (V); 602/728-9534 (V); 602/728-9536 (TTY); Fax: 602/728-9535

Project Number: H224A40002

Start Date: October 01, 1994

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 94 $507,916; FY 95 $550,000; FY 96 $509,130; FY 97 $547,130; FY 98

$675,531; FY 99 $654,103; FY 00 $654,103; FY 01 $654,103; FY 02 $490,000; FY 03 $490,577; FY

04 $490,577

Abstract: This program increases access to AT services and devices for people with disabilities and

their families and facilitates the development of a coordinated, consumer-responsive AT servicedelivery system. The program includes seven goals: (1) to establish a program infrastructure that is

consumer responsive and promotes system change; (2) to increase consumer involvement; (3) to

increase interagency collaboration and coordination; (4) to increase awareness of the needs for, and

efficacy of, AT services and devices; (5) to increase the competencies and skills of providers and

consumers of AT services and devices; (6) to improve program and fiscal resources; and (7) to develop

and implement protection and advocacy services in support of the program. Priority activities include:

information and referral, training and technical assistance, outreach to underrepresented populations,

funding and policy analysis, advocacy, and research.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-19

State Technology Assistance Projects State Technology Assistance Projects

Arkansas

Arkansas Increasing Capabilities Access Network (ICAN)

Arkansas Rehabilitation Services

Department of Workforce Education

2201 Brookwood Drive, Suite 117

Little Rock, AR 72202

bmvuletich@ars.state.ar.us

http://www.arkansas-ican.org

Principal Investigator: Barry Buletich

Public Contact: 800/828-2799 (V/TTY, in state only); 501/666-8868 (V/TTY); Fax: 501/666-5319

Project Number: H224A90020

Start Date: October 01, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $503,811; FY 90 $506,078; FY 91 $551,078; FY 92 $725,000; FY 93

$773,929; FY 94 $835,000; FY 95 $835,000; FY 96 $772,951; FY 97 $579,713; FY 98 $386,476; FY

99 $386,476; FY 00 $386,476; FY 01 $386,476; FY 02 $386,476; FY 03 $386,476

Abstract: This project’s activities and objectives include maintaining a clearinghouse for technology,

expanding funding alternatives for technology, creating a consumer-responsive technology system

through legal remedies, expanding outreach programs, increasing system capacity through education

across professional and technical disciplines, and providing information and referral services.
9-20 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

California

California Assistive Technology System (CATS)

California Department of Rehabilitation

External Affairs/Independent Living Division

2000 Evergreen; P.O. Box 944222

Sacramento, CA 94244-2220

bscwesi@dor.ca.gov; rharring@dor.ca.gov

http://www.atnet.org

Principal Investigator: Benjamin Harville 916/263-8950

Public Contact: Olivia Wetherbee; Edwina Brock 916/263-9842(V); 916/263-8685 (TTY); Fax: 916/

263-7467

Project Number: H224A30008

Start Date: October 01, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $550,000; FY 94 $680,000; FY 95 $900,000; FY 96 $833,000; FY 97

$871,121; FY 98 $1,337,103; FY 99 $1,315,675; FY 00 $1,315,675; FY 01 $986,765; FY 02

$657,838

Abstract: This project is administered by a unit within the lead agency, Department of Rehabilitation.

It is advised by an Assistive Technology Advisory Committee (ATAC), a majority of whose members

are consumers. The unit administers a transportation and AT loan guarantee program. The unit contracts with other entities to provide advocacy services, outreach, and training for underserved and rural

populations; establish AT centers in rural counties; and establish a nonprofit organization to conduct

other project activities and continue the project when grant funding ends. The nonprofit unit (AT

Network) operated by the California Foundation for Independent Living Centers (CFILC) includes a

toll-free AT information and referral service (800/390-2699 [V] and 800/900-0706 [TTY], in state

only), a project web site, an AT news service, public awareness and marketing activities, interagency

coordination, and coordination of system change activities.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-21

State Technology Assistance Projects State Technology Assistance Projects

Colorado

Colorado Assistive Technology Project (CATP)

University of Colorado Health Sciences Center

Assistive Technology Partners

1245 East Colfax Avenue, Suite 200

Denver, CO 80218

cathy.bodine@uchsc.edu

http://www.uchsc.edu/atp

Principal Investigator: Cathy Bodine, Project Director 303/315-1281

Public Contact: 800/255-3477 (in state only); 303/315-1280 (V); 303/837-8964 (TTY); Fax: 303/

837-1208

Project Number: H224A40014

Start Date: October 01, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $540,140; FY 90 $542,571; FY 91 $577,571; FY 92 $609,538; FY 93

$690,407; FY 94 $780,000; FY 95 $780,000; FY 96 $722,000; FY 97 $541,529; FY 98 $361,019; FY

99 $361,019; FY 00 $361,018; FY 01 $361,019; FY 02 $361,019; FY 03 $361,019; FY 04 $361,019

Abstract: This project’s activities and objectives include a network of Technology Outreach Centers

throughout the state and a central AT resource center. Project activities include information, referral,

public awareness, training, technical assistance, and electronic networking linkages between local

agencies and the state. Systems-change activities include a task force on policy review and analysis,

ongoing advocacy education, and direct advocacy services through a contract with the state protection

and advocacy system.
9-22 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Connecticut

Connecticut Assistive Technology Project

Connecticut Department of Social Services

Bureau of Rehabilitation Services

25 Sigourney Street, 11th Floor

Hartford, CT 06106

DrJohnF@aol.com

http://www.techactproject.com

Principal Investigator: John M. Ficarro

Public Contact: 800/537-2549 (in state only); 860/424-4881 (V); 860/424-4839 (TTY); Fax: 860/

424-4850

Project Number: H224A20013

Start Date: October 01, 1992

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 92 $525,000; FY 93 $554,000; FY 94 $580,000; FY 95 $520,000; FY 96

$500,000; FY 97 $538,000; FY 98 $651,365; FY 99 $629,937; FY 00 $472,453; FY 01 $314,969; FY

02 $314,969; FY 03 $314,969; FY 04 $314,969

Abstract: This program provides Connecticut residents with disabilities a single point of entry for

advocacy, information and referral, peer counseling, and access to objective expert advice and consultation. This system is founded on the principles of ready access to available technology, informed

choice, coordination, and maximum use of available resources and knowledge. The project’s lowinterest AT revolving loan fund serves as an alternative funding mechanism for individuals ineligible

for existing funding streams. The project has developed a multi-service center based on a business

model and includes equipment recycling, equipment loan, demonstration, computer lab and offers

training and other services. Finally, the program is supported by an extensive training, education, and

public awareness component, though these services have been reduced as a reality of reduced funding.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-23

State Technology Assistance Projects State Technology Assistance Projects

Delaware

Delaware Assistive Technology Initiative (DATI)

Center for Applied Science and Engineering

University of Delaware

Alfred I. duPont Hospital for Children

1600 Rockland Road; P.O. Box 269

Wilmington, DE 19899-0269

dati@asel.udel.edu

http://www.dati.org

Principal Investigator: Beth A. Mineo Mollica, PhD 302/651-6836

Public Contact: Carmen Taylor-Acevedo, Staff Assistant 800/870-DATI (V/TTY, in state only); 302/

651-6790 (V); 302/651-6794 (TTY); Fax: 302/651-6793

Project Number: H224A10005

Start Date: September 01, 1991

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 91 $501,562; FY 92 $505,146; FY 93 $550,616; FY 94 $620,000; FY 95

$620,000; FY 96 $573,934; FY 97 $611,928; FY 98 $695,827; FY 99 $521,870; FY 00 $347,921; FY

01 $347,914; FY 02 $347,914; FY 03 $347,914; FY 04 $347,914

Abstract: The DATI project has established county resource centers in each of Delaware’s three

counties. These centers serve as information and equipment resource sites, offering short-term equipment loans, training and demonstration workshops, and regular informational mailings. DATI also

offers a quarterly newsletter featuring articles on funding, equipment recycling, and general AT information. DATI assists consumers in locating funding for AT devices and services. Collaboration among

existing state agencies and consumer groups has enhanced assistive technology promotion further

throughout the state.
9-24 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

District of Columbia

University Legal Services AT Program for the District of Columbia

University Legal Services

220 I Street Northeast, Suite 130

Washington, DC 20002

atpdc@uls-dc.com

http://www.atpdc.org

Principal Investigator: Alicia C. Johns 202/547-0198, ext. 134

Public Contact: Information Specialist 202/547-0198 (V); 202/547-2657 (TTY); Fax: 202/547-2662

Project Number: H224A30001

Start Date: October 01, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $500,000; FY 94 $550,180; FY 95 $565,000; FY 96 $523,015; FY 97

$557,503; FY 98 $632,503; FY 99 $616,143; FY 00 $616,143; FY 01 $462,107; FY 02 $308,072; FY

03 $308,072; FY 04 $308,072

Abstract: This project’s activities are designed to empower individuals with disabilities; to promote

consumer involvement and advocacy; to provide information, referral, and training as they relate to

accessing assistive technology services and devices; and to identify and improve access to funding

resources. Activities focus on increasing access to AT devices and services for school age children,

public awareness, and demonstrations targeting people who are underserved. The program collaborates

with public and private entities, conducts advocacy training specifically for consumers with disabilities,

and implements systems change activities that increase access to, provision of, and funding for AT

devices and services on a permanent basis. This project operates a Resource Center, a reduced-interest

AT financial loan program, and a short-term AT equipment lending program.o:
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-25

State Technology Assistance Projects State Technology Assistance Projects

Florida

Florida Alliance for Assistive Service and Technology (FAAST), Inc.

FAAST, Inc.

325 John Knox Road, Bldg. B

Tallahassee, FL 32303-4151

faast@faast.org

http://faast.org

Principal Investigator: Jane E. Johnson

Public Contact: Lana Peterson, Director of Program Services 800/322-7881 (V/TTY, in state,

information and referral only); 850/487-3278 (V/TTY); 850/487-2850 (TTY/Fax); Fax: 850/

487-2805

Project Number: H224A000001

Start Date: July 01, 1992

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 92 $550,000; FY 93 $995,000 (includes carryover funding); FY 94 $730,000;

FY 95 $700,000; FY 96 $647,983; FY 97 $685,983; FY 98 $922,107; FY 99 $902,700; FY 00

$675,509; FY 01 $450,340; FY 02 $450,340; FY 03 $450,340; FY 04 $450,340

Abstract: FAAST, designed by and for consumers in Florida, provides comprehensive consumer

outreach, awareness, and services. Its consumer-directed board is composed of 51-percent people with

disabilities or family members of individuals with disabilities. Services are provided through four

strategically located regional centers in Tallahassee, Jacksonville, Tampa, and Miami. FAAST’s

mission is to enhance the quality of life for all Floridians with disabilities by promoting access to,

awareness of, and advocacy for AT. Through a seamless supportive network between Florida business

and government, FAAST provides AT products and services that enable people with disabilities to

participate fully in independent living, education, work, and recreation.
9-26 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Georgia

Georgia Tools for Life

Georgia Department of Labor

Vocational Rehabilitation Program, Assistive Technology Unit

1700 Century Circle, Suite 300

Atlanta, GA 30345

info@gatfl.org

http://www.gatfl.org

Principal Investigator: Joy Kniskern

Public Contact: Rebecca Roper 800/497-8665 (V, in state only); 404/638-0384 (V); 404/638-0385

(TTY); Fax: 404/486-0218

Project Number: H224A10001

Start Date: September 01, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $519,474; FY 92 $520,000; FY 93 $585,000; FY 94 $729,924; FY 95

$729,924; FY 96 $675,683; FY 97 $713,683; FY 98 $888,822; FY 99 $666,617; FY 00 $444,411; FY

01 $444,411; FY 02 $444,411; FY 03 $444,411; FY 04 $444,411

Abstract: The Georgia Tools for Life program includes training at all levels, public awareness, funding policy analysis, direct services, device lending libraries, and program evaluation. The hub of Tools

for Life is operated out of the Georgia Division of Rehabilitation Services. Tools for Life is responsible

for seven areas of coordination: (1) policy analysis and improved service delivery, (2) coordination

with consumers, (3) coordination among public and private organizations, (4) training and technical

assistance, (5) public awareness and an information and referral network, (6) advocacy, and (7) consumer-responsive program evaluation. Tools for Life also coordinates four Assistive Technology

Resource Centers, the ReBoot Recycling Service, and is helping to create the GettingAhead Association for individuals who are improving their economic self-sufficency. The association includes financial services such as economic literacy assistance.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-27

State Technology Assistance Projects State Technology Assistance Projects

Guam

Guam System for Assistive Technology (GSAT)

AVP/CEDDARS/GSAT

University of Guam, UOG Station

Mangilao, GU 96923

gsat@ite.net

http://uog2.uog.edu/uap/gsat.html

Principal Investigator: Heidi E. Farra-San Nicolas, PhD 671/735-2482 (V)

Public Contact: Michael Terlaje 671/735-2490, ext. 3 (V); 671/735-2491 (TTY); Fax: 671/734-8378

Project Number: H224A40003

Start Date: October 01, 1994

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 94 $150,000; FY 95 $150,000; FY 96 $150,000; FY 97 $150,000; FY 98

$150,000; FY 99 $150,000; FY 00 $105,000; FY 01 $105,000; FY 02 $105,000; FY 03 $105,000; FY

04 $105,000

Abstract: This project has established a consumer-responsive, comprehensive, territory-wide program

of technology-related assistance for people with disabilities to assist in overcoming Guam’s unique

challenges, including limited local funding, lack of trained personnel, few markets and market incentives, limited information, and limited eligibility for specific federal funding. Additionally, the provision

of AT devices and services in the Pacific Basin presents many unique challenges. Small island systems,

such as Guam, have limited budgets, and a harsh tropical-island environment (salt water, high humidity, and rough terrain) that creates difficulties for equipment repair and maintenance. The remote

geographic location makes procurement, adjustments, and custom modifications to assistive technology

equipment extremely difficult and costly. The project emphasizes and supports systems change and

advocacy activities that serve to build capacity within existing programs and with people with disabilities of all ages. GSAT is administered locally by Guam University’s Center for Excellence in Developmental Disabilities Education, Research, and Service (CEDDERS).
9-28 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Hawaii

Assistive Technology Resource Centers of Hawaii (ATRC)

ATRC

414 Kuwili Street, Suite 104

Honolulu, HI 96817

atrc@atrc.org

http://www.atrc.org

Principal Investigator: Barbara Fischlowitz-Leong, Executive Director 808/532-7110

Public Contact: 800/645-3007 (V/TTY, in state only); 808/532-7110 (V/TTY); Fax: 808/532-7120

Project Number: H224A10023

Start Date: October 01, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $530,926; FY 92 $530,926; FY 93 $530,926; FY 94 $660,895; FY 95

$678,000; FY 96 $627,618; FY 97 $665,618; FY 98 $754,956; FY 99 $566,217; FY 00 $377,478; FY

01 $377,478; FY 02 $377,478; FY 03 $377,478; FY 04 $377,478

Abstract: Assistive Technology Resource Centers of Hawaii (ATRC) provides information and

training on AT devices, services, and funding resources for the residents of Hawaii and also works

nationally as part of the Association of Tech Act Projects. The organization conducts presentations and

demonstrations in the community to increase AT awareness and promote self-advocacy among people

with disabilities. ATRC offers classes on basic software and AT software in the state-of-the-art Technology Center. Open lab time is available for personal computer use. ATRC operates six equipment

loan banks throughout Hawaii for individuals to try out AT devices. For eligible individuals wanting to

purchase AT devices, ATRC offers financial loans. The agency collaborates with educators, independent living specialists, employment counselors, medical professionals, and others to ensure individuals

have access to the technology they want and need. An advisory council to the organization provides

input from the prospective of consumers and service providers, and the organization collaborates with

state agency officials through its Policy Coordinating Committee, members of which are appointed by

the Governor.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-29

State Technology Assistance Projects State Technology Assistance Projects

Idaho

Idaho Assistive Technology Project

University of Idaho

129 West Third Street

Moscow, ID 83843-4401

rseiler@uidaho.edu

http://www.educ.uidaho.edu/idatech

Principal Investigator: Ron Seiler, Project Director

Public Contact: Susan House, Information Specialist 800/432-8324 (V/TTY); 208/885-3559 (V/

TTY); Fax: 208/885-3628

Project Number: H224A20017

Start Date: September 01, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $529,436; FY 93 $676,680 (includes carryover funding); FY 94 $620,000;

FY 95 $634,246; FY 96 $587,115; FY 97 $625,115; FY 98 $719,907; FY 99 $698,479; FY 00

$539,000; FY 01 $349,240; FY 02 $349,240; FY 03 $349,240; FY 04 $349,240

Abstract: The Idaho Assistive Technology Project is managed by the Center on Disabilities and

Human Development at the University of Idaho. The project engages in systems change activities,

training, materials development, information dissemination, and advocacy activities directed at increasing the availability of assistive devices and services to Idahoans who have disabilities. A customer

board directs the overall activities of the project and engages in a process of barrier identification and

elimination. Major project components include training for consumers and service providers about AT,

funding and loan programs for AT, advocacy, direct service provision through two regional resource

centers, and systems change that addresses policy, practice, and legislation.
9-30 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Illinois

Illinois Assistive Technology Project (IATP)

IATP

1 West Old State Capitol Plaza, Suite 100

Springfield, IL 62701

iatp@iltech.org

http://www.iltech.org

Principal Investigator: Wilhelmina Gunther

Public Contact: Sherry Edwards 800/852-5110 (V/TTY, in state only); 217/522-7985 (V/TTY); 217/

522-9966 (TTY); Fax: 217/522-8067

Project Number: H224A90038

Start Date: October 01, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $515,300; FY 90 $517,619; FY 91 $617,619; FY 92 $620,000; FY 93

$750,000; FY 94 $923,271; FY 95 $923,271; FY 96 $833,121; FY 97 $640,997; FY 98 $427,332; FY

99 $647,332; FY 00 $427,332; FY 01 $427,332; FY 02 $427,332; FY 03 $427,332; FY 04 $427,332

Abstract: This project’s activities and objectives include information and referral services highlighting

available technology and services, comprehensive advocacy training for people with disabilities and

their families, and opportunities to explore AT options in the demonstration center. The project has

statewide consumer involvement. Consumers have input into all facets of the project’s operation, from

establishing goals and objectives to implementing the activities.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-31

State Technology Assistance Projects State Technology Assistance Projects

Indiana

ATTAIN (Assistive Technology Through Action in Indiana,

Incorporated)

ATTAIN

32 East Washington Street, Suite 1400

Indianapolis, IN 46204

attain@attaininc.org

http://www.attaininc.org

Principal Investigator: Gary Hand, Executive Director

Public Contact: Mary Duffan 317/486-8808 (V); 317/486-8809 (TTY); 800/528-8246 (in-state only);

Fax: 317/486-8809

Project Number: H224A00027

Start Date: July 01, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $521,480; FY 91 $541,277; FY 92 $565,277; FY 93 $660,288; FY 94

$726,892; FY 95 $726,892; FY 96 $672,877; FY 97 $710,877; FY 98 $533,158; FY 99 $355,439; FY

00 $355,439; FY 01 $355,439; FY 02 $355,439; FY 03 $355,439; FY 04 $355,439

Abstract: The mission of Attain is to create solutions that enable people with functional limitations to

continue to live, learn, work, and play in the community of their choice. Attain provides direct service

programs and promotes systems change in the public and private sectors to promote the availability and

use of assistive technologies. Direct service programs include assistive technology evaluations and

treatments, information and referral services equipment exchange network, alternative loan program,

group and individual training, equipment loan program, and advocacy. Attain service individuals of all

ages and disabilities.
9-32 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Iowa

Iowa Program for Assistive Technology (IPAT)

Iowa University Center for Excellence in Disabilities

Center for Disabilities and Development

100 Hawkins Drive, Room S295

Iowa City, IA 52242-1011

infotech@uiowa.edu

http://www.uiowa.edu/infotech

Principal Investigator: Jane Gay, 319/356-4463

Public Contact: 800/331-3027 (V/TTY); 877/686-0032 (TTY); Fax: 319/356-8284

Project Number: H224A00028

Start Date: April 01, 1990

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 90 $557,322; FY 91 $594,287; FY 92 $595,289; FY 93 $700,314; FY 94

$735,000; FY 95 $735,000; FY 96 $680,382; FY 97 $718,382; FY 98 $538,787; FY 99 $359,191; FY

00 $359,191; FY 01 $359,191; FY 02 $359,191; FY 03 $359,191; FY 04 $359,191

Abstract: This project conducts awareness and training programs and collaborates with other systemschange efforts. The goals and objectives of the Iowa Program are developed and implemented through

an extensive process that involves consumers, advocacy organizations, private and public service

providers, regional and state agencies, third-party payers, and entities not traditionally associated with

AT services. The information and referral portion of the Iowa program, Iowa COMPASS, provides

information on new and used adaptive equipment, funding information, and a newsletter/ The Iowa

Program is working closely with the state’s Olmstead Project and CMS funded projects to improve

funding and access to assistive technology devices and services. The Iowa Program is also working on

several projects with the state’s department of education to improve access to devices and services

through Part C and B, and in post-secondary settings. The Iowa Program is also working with the state

Secretary to State on the implementation of the state HAVA plan activities. The Iowa Program works

with existing agencies and services to increase their capacity to provide assistive technology services

across the state.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-33

State Technology Assistance Projects State Technology Assistance Projects

Kansas

Assistive Technology for Kansans Project

University of Kansas

Life Span Institute

2601 Gabriel Avenue; P.O. Box 738

Parsons, KS 67357

ssack@ku.edu

http://atk.ku.edu

Principal Investigator: Charles R. Spellman, EdD; Sara H. Sack, PhD

Public Contact: 800/526-3648 (800/KAN DO IT, in state only); 620/421-8367 (V/TTY); Fax: 316/

421-0954 (Fax/TTY)

Project Number: H224A30013

Start Date: October 01, 1993

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $515,000; FY 94 $529,999; FY 95 $550,000; FY 96 $513,758; FY 97

$551,758; FY 98 $665,404; FY 99 $643,976; FY 00 $643,876; FY 01 $483,077; FY 02 $362,216; FY

03 $362,216; FY 04 $362,216

Other Funding: FY 93 $89,029 (Kansas Rehabilitation Services); FY 95 $395,000 (KRS); FY 96

$780,000 (KRS); FY 01 $61,906 (KRS); FY 02 $375,000 (KRS); FY 03 $35,000 (Kansas Department of Health & Environment)

Abstract: Through consumer involvement and leadership by the Kansas University Program at

Parsons, this project engages in activities that are designed to result in laws, regulations, policies,

practices, or organizational structures that promote consumer-responsive programs that increase access

to assistive technology devices and services. Through subcontracts with organizations across the state,

the project operates five Regional Assistive Technology Access Sites, provides a toll-free number that

connects callers directly to the appropriate Regional Access Site, manages an Interagency Equipment

Loan System, and leads a policy analysis and legislative alert effort.
9-34 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Kentucky

Kentucky Assistive Technology Service (KATS) Network

Kentucky Assistive Technology Service (KATS) Network

KATS Network Coordinating Center

8412 Westport Road

Louisville, KY 40242

katsnet@iglou.com

http://www.katsnet.org

Principal Investigator: J. Chase Forrester, JD, Project Director

Public Contact: Ronji Dearborn 800/327-5287 (V/TTY, in state only); 502/327-0022 (V/TTY); 502/

327-9855 (TTY); Fax: 502/327-9974

Project Number: H224A90002

Start Date: October 01, 1989

Length: 180 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 89 $535,102; FY 90 $537,510; FY 91 $577,102; FY 92 $680,000; FY 93

$710,108; FY 94 $800,000; FY 95 $800,000; FY 96 $740,552; FY 97 $555,414; FY 98 $370,276; FY

99 $370,276; FY 00 $370,276; FY 01 $370,276; FY 02 $370,276; FY 03 $370,276; FY 04 $370,276

Other Funding: FY 03 $37,167 (SE-DBTAC)

Abstract: This project is a statewide network of organizations and individuals connecting to create a

consumer-driven, collaborative system to make assistive technology information, devices, and services

easily obtainable for people of any age or disability. In addition to its primary role in the development

and coordination of activities among state agencies and organizations that facilitate access to, provision

of, and funding for AT devices and services, the Coordinating Center staff conducts information and

referral services and disseminates information. Associated organizations provide training activities,

assessments and evaluations, consultations on appropriate technologies, technical assistance, operate an

equipment recycling and lending program and implement a low interest loan program. Consumers

represent a majority of the advisory board membership.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-35

State Technology Assistance Projects State Technology Assistance Projects

Louisiana

Louisiana Assistive Technology Access Network (LATAN)

LATAN

P.O. Box 14115

Baton Rouge, LA 70898-4115

cpourciau@latan.org

http://www.latan.org

Principal Investigator: Julie M. Nesbit

Public Contact: Clara Pourciau 800/270-6185 (V/TTY); 225/925-9500 (V/TTY); Fax: 225/925-9560

Project Number: H224A10028

Start Date: September 01, 1991

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 91 $502,566; FY 92 $505,398; FY 93 $555,398; FY 94 $631,095; FY 95

$660,000; FY 96 $610,955; FY 97 $648,955; FY 98 $791,475; FY 99 $593,606; FY 00 $395,738; FY

01 $395,738; FY 02 $395,738; FY 03 $395,738; FY 04 $395,738

Other Funding: FY 03 $1,500,000 (Title III, AT Act)

Abstract: Louisiana Assistive Technology Access Network’s (LATAN) mission is to assist individuals with disabilities to achieve a higher quality of life and greater independence through increased

access to assistive technology as part of their daily lives. Major program initiatives include: (1) empowering consumers to make informed choices regarding universal design (UD) and assistive technology

(AT); (2) providing skills training to providers in UD and AT; (2) a loan program that provides consumers with alternative purchasing options; (3) a computer recycling program; (4) a peer support

network for assistive technology users, providers, and vendors; and (5) interagency collaboration for

advocacy and policy work, especially in the area of long-term supports and services for individuals of

all ages with disabilities and functional limitations due to aging. Demonstrations and presentations

provide an opportunity for LATAN to reach rural and inner-city areas, where a majority of ethnic

minorities and elderly reside. LATAN provides information about AT that will enable an individual to

live at home, work, learn and recreate, and about the services needed to acquire and use these devices.

Members of the project staff provide training that empowers individuals to self-advocate successfully

for the aids they need. LATAN also advocates for increased access to assistive technology through

public and private agencies and entities. Training is provided to increase the skills of case managers,

personal assistants, rehabilitation counselors, educators, therapists, and other providers and support

personnel to recognize the benefits and uses of, and the need for, various types of AT devices and

services. A consumer-majority board directs LATAN.
9-36 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Maine

Maine Consumer Information and Technology Training Exchange

(Maine CITE)

Maine CITE Coordinating Center

46 University Drive

Augusta, ME 04330

kpowers@maine.edu

http://www.mainecite.org

Principal Investigator: David Noble Stockford 207/624-6650 (V); 207/624-6800 (TTY)

Public Contact: Kathleen Powers, Project Director 207/621-3195 (V); 207/621-3482 (TTY); Fax:

207/621-3193

Project Number: H224A90047

Start Date: October 01, 1989

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 89 $541,876; FY 90 $544,315; FY 91 $594,315; FY 92 $650,000; FY 93

$750,000; FY 94 $845,000; FY 95 $845,000; FY 96 $782,000; FY 97 $586,656; FY 98 $391,104; FY

99 $391,104; FY 00 $391,104; FY 01 $391,104; FY 02 $391,104; FY 03 $391,104; FY 04 $391,104

Abstract: This project collaborates with various Maine organizations, including centers for independent living, parent training agencies, and nonprofit community programs, to build a statewide network

of information and resources on AT. Project goals are: to promote broader understanding of the benefits and wider availability of AT; to educate people with disabilities, their families, professionals, and

general public in purchasing and using AT; to promote self-advocacy among people with disabilities to

shape public policy that promotes assistive technology and universal design; and to assist public and

private institutions, organizations, and associations in providing the knowledge, skills, and competencies related to AT and universal design to their constituents.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-37

State Technology Assistance Projects State Technology Assistance Projects

Maryland

Maryland Technology Assistance Program (MD TAP)

Department of Disabilities

2301 Argonne Drive, Room T17

Baltimore, MD 21218

mdtap@mdtap.org

http://www.mdtap.org

Principal Investigator: Michael Dalto, Project Executive Director

Public Contact: Jessica Volmer 800/832-4827 (800/TECH TAP, V/TTY); 410/554-9230 (V/TTY);

Fax: 410/554-9237

Project Number: H224A90019

Start Date: October 01, 1989

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 89 $500,000; FY 90 $502,250; FY 91 $502,250; FY 92 $671,029; FY 93

$770,000; FY 94 $825,000; FY 95 $825,000; FY 96 $763,694; FY 97 $572,771; FY 98 $381,000; FY

99 $381,847; FY 00 $381,847; FY 01 $381,847; FY 02 $381,847; FY 03 $381,847; FY 04 $381,847

Abstract: The Maryland Technology Assistance Program (MD TAP) is a part of the Department of

Disabilities serving individuals of all ages and disabilities. Activities of this program include conducting a public awareness campaign with a toll-free phone number, maintaining lending libraries of

information and AT devices, and equipment demonstration centers. The program administers a loan

guarantee project, that makes possible low-interest loans for AT to individuals with disabilities. The

program grants funds to private organizations to provide regional coverage of the state in relation to AT

issues.
9-38 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Massachusetts

Massachusetts Assistive Technology Partnership

Children’s Hospital

1295 Boylston Street, Suite 310

Boston, MA 02215

matp@matp.org

http://www.matp.org

Principal Investigator: Marylyn Howe, Project Director 617/355-7167 (TTY)

Public Contact: Patricia Hill 800/848-8867 (V/TTY, in state only); 617/355-7153 (V); 617/355-7301

(TTY); Fax: 617/355-6345

Project Number: H224A00036

Start Date: July 01, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $563,998; FY 91 $593,993; FY 92 $624,062; FY 93 $725,764; FY 94

$811,962; FY 95 $811,962; FY 96 $751,592; FY 97 $789,592; FY 98 $592,194; FY 99 $592,194; FY

00 $394,796; FY 01 $394,796; FY 02 $394,796; FY 03 $394,796; FY 04 $394,796

Abstract: The Massachusetts Assistive Technology Partnership (MATP) is a consumer-responsive,

cross-disability, multicultural, statewide project that conducts activities to increase access to AT for

people with disabilities. Activities include public awareness, information services, training and technical assistance, funding and policy analysis, advocacy, and related work to improve services and promote involvement of people with disabilities in AT. Through regional Peer Assistive Technology

Programs, The MATP provides information and referral, peer networking, training, and individual and

systems advocacy. The MATP works closely with people with disabilities, family members, providers,

and state agencies to identify needs and pursue change in the AT service-delivery system. The project

publishes an AT newsletter, pursues remedies of funding and policy barriers, provides training on a

range of AT available and resources for obtaining assistive technology, pursues improvement of

equipment standards, promotes increased availability of services, promotes increased involvement of

people with disabilities in AT services and policy making, and coordinates with related projects in

Massachusetts, regionally, and nationally.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-39

State Technology Assistance Projects State Technology Assistance Projects

Michigan

Michigan’s Assistive Technology Project

Michigan Disability Rights Coalition

780 West Lake Lansing Road, Suite 200

East Lansing, MI 48823

http://www.copower.org

Principal Investigator: Harold Wasner 517/373-3390

Public Contact: Kathryn Wyeth 800/760-4600 (V/TTY, in state only); 517/333-2477 (V/TTY); Fax:

517/333-2677

Project Number: H224A50009

Start Date: September 01, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $550,000; FY 93 $885,881 (includes carryover funding); FY 94 $610,000;

FY 95 $850,000; FY 96 $786,837; FY 97 $824,837; FY 98 $1,033,953; FY 99 $1,012,525; FY 00

$759,394; FY 01 $506,263; FY 02 $506,263; FY 03 $506,263; FY 04 $506,263

Abstract: Michigan’s AT Project focuses on building the capacity of community-based, local organizations to advocate for the use of AT as a tool for inclusion in all aspects of life. Currently, Michigan’s

AT Project has projects around the state that are creating genuine systems change on a local basis. The

AT Project also supports a web-based system of AT resources and communication networks.
9-40 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Minnesota

Minnesota System of Technology to Achieve Results (STAR) Program

State of Minnesota Department of Administration

309 Administration Building; 50 Sherburne Avenue

St. Paul, MN 55155

star.program@state.mn.us

http://www.admin.state.mn.us/assistivetechnology

Principal Investigator: Charles Rassbach 651/297-1554

Public Contact: 800/657-3862 (V, in state only); 800/657-3895 (TTY, in state only); 651/296-7516

(V); 651/296-9478 (TTY); Fax: 651/282-6671

Project Number: H224A90041

Start Date: October 01, 1989

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 89 $500,000; FY 90 $502,250; FY 91 $567,250; FY 92 $700,000; FY 93

$750,000; FY 94 $820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $694,268; FY 98 $569,300; FY

99 $379,500; FY 00 $379,500; FY 01 $379,533; FY 02 $379,533; FY 03 $379,533; FY 04 $379,533

Abstract: This project: (1) provides a toll-free information service for residents of Minnesota; (2)

distributes brochures and other literature; (3) hosts workshops and forums; (4) provides opportunities

for consumer involvement; and (5) assists individuals seeking funding. STAR advocates for policy,

practice, and legislative change regarding access to AT; contracts for mobile outreach projects and legal

advocacy services; and provides grants on a regional basis.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-41

State Technology Assistance Projects State Technology Assistance Projects

Mississippi

Mississippi Project START (Success Through Assistive/Rehabilitative

Technology)

Mississippi Department of Rehabilitation Services

P.O. Box 1698

Jackson, MS 39215-1000

contactus@msprojectstart.org

http://www.msprojectstart.org

Principal Investigator: Stephen Power, Project Director

Public Contact: Eugenie Bradshaw 800/852-8328 (V/TTY, in state only); 601/987-4872 (V/TTY);

Fax: 601/364-2349

Project Number: H224A00032

Start Date: May 01, 1990

Length: 168 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 90 $521,285; FY 91 $530,000; FY 92 $554,000; FY 93 $594,714; FY 94

$619,430; FY 95 $619,430; FY 96 $573,400; FY 97 $611,400; FY 98 $458,550; FY 99 $305,700; FY

00 $305,700; FY 01 $305,700; FY 02 $305,700; FY 03 $305,700; FY 04 $305,700

Abstract: Project START is a multifaceted, collaborative effort. The primary components include: (1)

an advisory council that allows for consumer input and the involvement of other relevant agencies,

organizations, and groups; (2) an information clearinghouse that provides people with disabilities, their

families, service providers, and other interested parties with information regarding available AT devices

and services; (3) a training program that ensures that service provider personnel, people with disabilities, and other relevant parties are familiar with the utility and potential of AT devices; (4) a model

service-delivery system that acts as a referral source and concurrent technical resource to existing AT

providers, and provides AT services to people with disabilities ineligible for existing programs; and (5)

an equipment loan program that makes assistive devices available to people with disabilities for trial

periods, for use while their personal equipment is being repaired or replaced, and to service providers

for training and demonstration purposes.
9-42 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Missouri

Missouri Assistive Technology Project

Missouri Department of Labor and Industrial Relations

Governor’s Council on Disability

4731 South Cochise, Suite 114

Independence, MO 64055-6975

matpmo@swbell.net

http://www.dolir.state.mo.us/matp

Principal Investigator: Diane Golden, PhD, Project Director

Public Contact: 800/647-8557 (V, in state only); 800/647-8558 (TTY, in state only); 816/373-5193

(V); 816/373-9315 (TTY); Fax: 816/373-9314

Project Number: H224A30015

Start Date: September 01, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $524,488; FY 92 $526,988; FY 93 $550,801; FY 94 $667,121; FY 95

$675,000; FY 96 $689,639; FY 97 $727,639; FY 98 $878,221; FY 99 $658,666; FY 00 $439,111; FY

01 $439,111; FY 02 $439,111; FY 03 $439,111

Abstract: The primary components of this project include: (1) a statewide advisory council established

to provide input from consumers and relevant state agencies; (2) legislative and policy initiatives

including an equipment loan program, an equipment distribution program that provides both adaptive

telephone equipment and adaptive computer equipment, a no-interest or low-interest loan program to

purchase AT, a funding program to provide AT to children to age 21, health care coverage for mandatory infant hearing screenings and initial amplification devices, Medicaid coverage of augmentative

communication devices for adults, an AT lemon law, sales tax exemptions on AT, managed care

reform, and accessible state IT; (3) an information and referral service; (4) individual advocacy services; and (5) a statewide AT conference.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-43

State Technology Assistance Projects State Technology Assistance Projects

Montana

MonTECH

University of Montana

The Rural Institute

634 Eddy Avenue

Missoula, MT 59812

montech@selway.umt.edu

http://montech.ruralinstitute.umt.edu/

Principal Investigator: Gail McGregor, Project Director

Public Contact: 800/732-0323 (V/TTY); 406/243-5676 (V/TTY); Fax: 406/243-4730

Project Number: H224A10002

Start Date: September 30, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $550,553; FY 92 $550,553; FY 93 $590,553; FY 94 $675,258; FY 95

$673,058; FY 96 $624,080; FY 97 $663,080; FY 98 $752,408; FY 99 $564,306; FY 00 $376,204; FY

01 $376,204; FY 02 $376,204; FY 03 $376,204; FY 04 $376,204

Abstract: This project develops a comprehensive statewide system of technology-related assistance to

ensure that all Montanans with disabilities have equitable access to the AT devices and services they

need. Emphasis is on eliminating barriers to obtaining AT, enacting policy change, improving awareness, strengthening consumer and provider networks, and increasing access to funding. The Montana

Consortium for Assistive Technology (MCAT) serves as the program advisory board and offers

opportunities for consumer participation. Activities currently underway include: (1) a comprehensive

equipment demonstration and evaluation center offering hands-on experience with devices to both

consumers and service providers; (2) an AT loan/lease clearinghouse; (3) an information and assistance

service that includes maintenance of a comprehensive database of Montana service programs; (4)

focused outreach activities with the state’s largest minority group, Native Americans; and (5) a web

site. Other activities include a low-interest financial loan program for consumers who do not qualify for

other funding sources, and specialized training programs to increase the skills of professionals providing AT services.
9-44 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Nebraska

Nebraska Assistive Technology Partnership

Nebraska Department of Education

Vocational Rehabilitation

5143 South 48th Street, Suite C

Lincoln, NE 68516-2204

atp@atp.state.ne.us

http://www.nde.state.ne.us/ATP/

Principal Investigator: Mark Schultz, Project Director 402/471-0734

Public Contact: Nancy Noha 888/806-6287 (V/TTY, in state only); 402/471-0734 (V/TTY); 402/

471-0735 (V/TTY); Fax: 402/471-6052

Project Number: H224A90040

Start Date: October 01, 1989

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 89 $523,000; FY 90 $525,352; FY 91 $570,352; FY 92 $730,000; FY 93

$766,984; FY 94 $820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $569,300; FY 98 $379,533; FY

99 $379,533; FY 00 $379,533; FY 01 $379,533; FY 02 $379,533; FY 03 $379,533; FY 04 $379,533

Abstract: The Partnership provides statewide AT and home modification services for Nebraskans of

all ages and disabilities. The Partnership is a collaboration of private, nonprofit, and governmental

organizations and agencies working together to create a seamless, comprehensive, statewide AT

program. Collaborators include Nebraska’s Departments of Education, Health and Human Services,

Developmental Disabilities, Economic Development, and Vocational Rehabilitation. The collaboration

has resulted in funding for services to help meet the diverse needs of consumers regarding education,

employment, housing, and independent living. These services include assessment, evaluation, fabrication, repair, maintenance, and training. Cost savings have also resulted due to equipment recycling,

identification of appropriate equipment, and cost sharing between partnering agencies. In addition, the

Partnership helps to support demonstration centers, utilizes a peer support network, and sponsors

special events, including technology expos. Training materials have been developed for educators

(three hour instructional unit and special education technical manual), health care professionals, and

insurance reviewers.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-45

State Technology Assistance Projects State Technology Assistance Projects

Nevada

Nevada Assistive Technology Collaborative

Dept. of Human Resources

Office of Disability Services

3656 Research Way suite 32

Carson City, NV 89706

Kpreston@DHR.State.NV.US

http://hr.state.nv.us/directors/disabilitysvcs/dhr_ods.htm

Principal Investigator: Todd Butterworth

Public Contact: Kelleen Preston 888/337-3839 (V, in state only); 775/687-4452 (V); 775/687-3388

(TTY); Fax: 775/687-3292

Project Number: H224A00037

Start Date: July 01, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $560,884; FY 91 $580,047; FY 92 $594,368; FY 93 $624,588; FY 94

$675,046; FY 95 $675,046; FY 96 $624,883; FY 97 $662,883; FY 98 $497,162; FY 99 $331,442; FY

00 $331,442; FY 01 $331,442; FY 02 $331,442; FY 04 $331,442

Abstract: The Nevada Project is accomplishing 15 major goals in systems change that have been

established in response to identified needs in consultation with the state’s consumer-directed executive

board. Additionally, the project trains 400 consumers in the use of technology; a minimum of 1,800

consumers in self-advocacy skills; 550 families in applying technology to the needs of a family member with a disability; and a minimum of 5,730 cross-disciplinary university undergraduates in the fields

of medicine, health, education, rehabilitation, gerontology, engineering, speech pathology and audiology, and counseling in AT and cultural awareness. The project provides information and referral and

other awareness services to a minimum of 10,000 consumers over the life of the project and evaluates

the impact of those services through follow-up and satisfaction surveys.
9-46 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

New Hampshire

New Hampshire Technology Partnership Project

University of New Hampshire Technology Partnership

Institute on Disability/UCE

The Concord Center

Ten Ferry Street #14

Concord, NH 03301-5019

sonke.dornblut@unh.edu

http://iod.unh.edu/projects/technology_policy.html–

Principal Investigator: Jan Nisbet, PhD; Terese Wilkomm, PhD 603/862-4320 (V/TTY)

Public Contact: S÷nke Dornblut 800-238-2048 (V/TTY, in state only); 603/224-0630 (V/TTY); Fax:

603/228-3270

Project Number: H224A10015

Start Date: September 01, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $506,307; FY 92 $505,008; FY 93 $550,008; FY 94 $635,000; FY 95

$635,000; FY 96 $587,813; FY 97 $625,813; FY 98 $717,815; FY 99 $538,361; FY 00 $358,908; FY

01 $358,908; FY 02 $358,908; FY 03 $358,908; FY 04 $358,908

Abstract: The goal of this project is to increase access to assistive technology through the creation and

support of consumer-driven systems for the provision of state-of-the-art assistive technology products

and services for citizens with disabilities in the state of New Hampshire. The project’s lead agency is

the Institute on Disability, a University Center of Excellence at the University of New Hampshire.

Additional subcontracts have been awarded to ATECH Services and Granite State Independent

Living.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-47

State Technology Assistance Projects State Technology Assistance Projects

New Jersey

New Jersey Assistive Technology Advocacy Center (ATAC)

New Jersey Protection and Advocacy, Inc.

210 South Broad Street, Third Floor

Trenton, NJ 08608

advocate@njpanda.org

http://www.njpanda.org/atac

Principal Investigator: Ellen Catanese, Project Director

Public Contact: 800/342-5832 (V, in state only); 609/633-7106 (TTY); 609/292-9742 (NJ P&A

Intake Unit); Fax: 609/777-0187

Project Number: H224A20007

Start Date: September 01, 1992

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 92 $548,050; FY 93 $670,528 (includes carryover funding); FY 94 $548,050;

FY 95 $550,000; FY 96 $509,130; FY 97 $547,130; FY 98 $710,380; FY 99 $688,800; FY 00

$516,714; FY 01 $344,476; FY 02 $344,476; FY 03 $344,476; FY 04 $344,476

Abstract: ATAC is a consumer-driven program whose mission is to increase awareness of and improve access to AT for all people with disabilities in the state. The project provides information and

referral through its 800 telephone number and web site regarding all aspects of AT. ATAC also provides advocacy services, both legal and nonlegal, addressing both individual and systems issues. In

addition, project staff members provide training and technical assistance, as well as outreach regarding

the benefits of and funding for AT devices and services. ATAC disseminates brochures, funding

guides, and informational bulletins.
9-48 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

New Mexico

New Mexico Technology Assistance Program (NMTAP)

New Mexico State Department of Education

Division of Vocational Rehabilitation

435 Saint Michaels Drive, Building D

Santa Fe, NM 87505

awinnegar@state.nm.us

http://www.nmtap.com

Principal Investigator: Andy Winnegar, Project Director 505/954-8521

Public Contact: Caroll Cadena 800/866-2253 (V/TTY); 800/659-4915 (TTY); 505/954-8533 (V/

TTY); Fax: 505/954-8562

Project Number: H224A00017

Start Date: April 01, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $500,500; FY 91 $515,500; FY 92 $525,000; FY 93 $660,710; FY 94

$750,000; FY 95 $750,000; FY 96 $694,000; FY 97 $732,268; FY 98 $549,201; FY 99 $366,134; FY

00 $366,134; FY 01 $366,134; FY 02 $366,134; FY 03 $366,134

Abstract: NMTAP examines and works to eliminate barriers to obtaining assistive technology in New

Mexico. The project has established a statewide program for coordinating AT services; the program is

designed to assist people with disabilities to locate, secure, and maintain AT that can increase, maintain, or improve functional capabilities of people with disabilities. This program is a resource both for

people requiring assistive technology and those that manufacture and provide AT devices or services.

The program focuses on permanently eliminating barriers in three major areas: access to, availability

of, and funding for AT with programs that include low cost financial loans and AT short-term loans to

individuals with disabilities..
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-49

State Technology Assistance Projects State Technology Assistance Projects

New York

New York State Technology-Related Assistance of Individuals with

Disabilities (TRAID) Project

New York State Office of Advocate for Persons with Disabilities

One Empire State Plaza, Suite 1001

Albany, NY 12223-1150

traid@oapwd.org

http://www.oapwd.org

Principal Investigator: Lisa Rosano-Kaczkowski, Project Manager

Public Contact: 800/522-4369 (V/TTY/Spanish, in state only); 518/474-2825 (V); 518/473-4231

(TTY); Fax: 518/473-6005

Project Number: H224A00041

Start Date: October 01, 1990

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 90 $500,000; FY 91 $600,000; FY 92 $615,000; FY 93 $820,961; FY 94

$950,000; FY 95 $950,000; FY 96 $879,406; FY 97 $917,406; FY 98 $688,054; FY 99 $458,703; FY

00 $458,703; FY 01 $458,703; FY 02 $458,703; FY 03 $458,703; FY 04 $458,703

Abstract: The Technology-Related Assistance of Individuals with Disabilities (TRAID) Project has

been established to improve access to AT through consumer-responsive interventions to effect systemic

change on a policy, regulatory, and legislative level. Project staff members chair and facilitate the

workings of the NYS Interagency Partnership on Assistive Technology, a group designed to collaborate with a consumer-majority advisory board to identify systemic barriers to AT devices and services

and collaborate on strategies to address the barriers. In collaboration with the NYS Department of

Health, Early Intervention Program, the TRAID Project administers 12 Regional TRAID Centers

(RTCs) that operate device demonstration and loan services, coordinate local information and referral,

and support individualized self-advocacy. Through a sucontract with Cornel University’s Disability

Business Technical Assistance Center, the RTC’s also disseminate materials on accessible information

technology. The TRAID Project also provides information and referral regarding assistive technology,

provides training and public awareness, and administers the TRAID-IN Equipment Exchange service.
9-50 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

North Carolina

North Carolina Assistive Technology Project

North Carolina Department of Health and Human Services

Division of Vocational Rehabilitation Services

1110 Navaho Drive, Suite 101

Raleigh, NC 27609-7322

rhiatt@ncatp.org

http://www.ncatp.org

Principal Investigator: Ricki Hiatt, Project Director 919/850-2787 (V/TTY)

Public Contact: 919/850-2787 (V/TTY); Fax: 919/850-2792

Project Number: H224A00010

Start Date: July 01, 1990

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 90 $566,425; FY 91 $595,441; FY 92 $625,843; FY 93 $730,152; FY 94

$820,000; FY 95 $820,000; FY 96 $759,066; FY 97 $797,066; FY 98 $597,800; FY 99 $398,533; FY

00 $398,533; FY 01 $398,533; FY 02 $398,533; FY 03 $398,533; FY 04 $398,533

Abstract: This project provides information and referral services, individualized consultant services,

technical assistance, and training seminars and materials. It supports eight (8) assistive technology

centers that provide evaluations, feature matching, device demonstration, trial of devices and short-term

equipment loan. The project’s central office in Raleigh coordinates systems change and advocacy,

policy, and funding issues statewide. The North Carolina Division of Vocational Rehabilitation Services provides the project with internal management systems, agency resources, and fiscal management.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-51

State Technology Assistance Projects State Technology Assistance Projects

North Dakota

North Dakota Interagency Program for Assistive Technology (IPAT)

North Dakota Department of Human Services

Office of Vocational Rehabilitation

3509 Interstate Blvd

Fargo, ND 58103

jlee@polarcomm.com

http://www.ndipat.org

Principal Investigator: Judith A. Lee, Project Director

Public Contact: 800/265-4728 (V/TTY); 701/239-7247 (V/TTY); Fax: 701/239-7229

Project Number: H224A30003

Start Date: October 01, 1993

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 93 $500,000; FY 94 $540,000; FY 95 $540,000; FY 96 $509,130; FY 97

$547,130; FY 98 $633,103; FY 99 $611,000; FY 00 $611,000; FY 01 $458,756; FY 02 $305,500; FY

03 $305,500; FY 04 $305,500

Abstract: The Interagency Program for Assistive Technology is dedicated to supporting the AT needs

of all people with disabilities in North Dakota, including those individuals experiencing the effects of

aging. The vision of this project is increased access to AT devices and services for the citizens of North

Dakota. This goal is realized through: (1) interagency coordination that develops and promotes policies

that improve access to AT devices and services for individuals with disabilities of all ages; (2) a public

awareness program designed to provide information to targeted individuals relating to the availability

and benefits of AT devices and services; (3) technical assistance and training that provides support to

public and private entities to increase consumer access to appropriate assessments, training, equipment,

and funding for AT; and (4) outreach activities to all regions of this rural and sparsely populated state,

including a focus on Native Americans and older individuals living below the poverty level, the two

population groups identified as underrepresented in North Dakota.
9-52 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Northern Mariana Islands

Commonwealth of the Northern Mariana Islands (CNMI) Assistive

Technology Project: System of Technology-Related Assistance for

Individuals with Disabilities (STRAID)

CNMI Governor’s Council on Developmental Disabilities

Capitol Hill

 P.O. Box 502565

Saipan, MP 96950-2565

clamkin@cnmiddcouncil.org; straid@cnmiddcouncil.org

http://www.cnmiddcouncil.org/atstraid/atflash.htm

Principal Investigator: Thomas J. Camacho, Project Director

Public Contact: Project Coordinator 670/664-7000 (V); Fax: 670/664-7010

Project Number: H224A40007

Start Date: October 01, 1994

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 94 $150,000; FY 95 $150,000; FY 96 $150,000; FY 97 $150,000; FY 98

$150,000; FY 99 $105,000; FY 00 $105,000; FY 01 $105,000; FY 02 $105,000; FY 03 $105,000; FY

04 $105,000

Abstract: This project provides technology-related assistance for people with disabilities in the Commonwealth of the Northern Mariana Islands. The project focuses on the development of a locally based

system for the technology-related needs of children, youth, and adults with disabilities. The primary

objective of this project is to enhance opportunities for people with disabilities in the Commonwealth

to become independent, productive, integrated, and fully included in the community. Through increased emphasis on coordination with agencies or organizations that provide or pay for the provision

of AT devices or services, the CNMI Council on Developmental Disabilities is building and activating

a system that responds to the needs of people with disabilities to: (1) have greater control over their

lives; (2) participate in, and contribute more fully to, activities in their home, school, work environment, and community; (3) interact to a greater extent with individuals who do not have disabilities; and

(4) benefit from opportunities that are taken for granted by individuals who do not have disabilities.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-53

State Technology Assistance Projects State Technology Assistance Projects

Ohio

Assistive Technology of Ohio (AT OHIO)

Ohio State University Research Foundation

J.L. Camera Center

2050 Kenny Road, 9th Floor

Columbus, OH 43221

atohio@osu.edu

http://www.atohio.org

Principal Investigator: Sheldon R. Simon, MD

Public Contact: Douglas Huntt, Executive Director 800/784-3425 (V/TTY, in state only); 614/292-

2426 (V/TTY); 614/292-3162 (TTY); Fax: 614/292-5866

Project Number: H224A40001

Start Date: August 01, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $522,100; FY 93 $522,000; FY 94 $770,113; FY 95 $600,000; FY 96

$555,414; FY 97 $593,414; FY 98 $815,688; FY 99 $794,260; FY 00 $595,695; FY 01 $397,130; FY

02 $397,130; FY 03 $397,130; FY 04 $397,130

Abstract: This project administers, and advocates for, programs that promote increased availability

and affordability of assistive technology for Ohioans with disabilities. Staff members work to accomplish an increased level of education among people with disabilities and the professionals that provide

services to them regarding the role that technology can play in the lives of people with disabilities. The

project educates the public at large about how technology can be the bridge to independence for

people with disabilities in the areas of employment, education, and everyday living. A project goal is to

improve the services provided to people with disabilities by state, locals and county governments,

service agencies, and public libraries. This project is a resource for people with disabilities to learn

about assistive technology and how it can help them overcome barriers in their lives. Project initiatives

include adaptive toy lending libraries for families of children with disabilities, low interest loans for

technology to people with disabilities, and a computer refurbishing and recycling program.
9-54 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Oklahoma

Oklahoma ABLE Tech

Oklahoma State University

Seretean Wellness Center

1514 West Hall of Fame

Stillwater, OK 74078-2026

mljwell@okstate.edu

http://okabletech.okstate.edu

Principal Investigator: Mac McCrory, Project Director

Public Contact: Linda Jaco, Project Manager 800/257-1705 (V/TTY); 405/744-9864 (V); Fax: 405/

744-2487

Project Number: H224A50007

Start Date: July 01, 1992

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 92 $530,000; FY 93 $668,524 (includes carryover funding); FY 94 $530,000;

FY 95 $575,000; FY 96 $532,272; FY 97 $570,272; FY 98 $695,237; FY 99 $673,809; FY 00

$505,357; FY 01 $336,905; FY 02 $336,905; FY 03 $336,905; FY 04 $336,905

Other Funding: FY 92 $149,944 $85,000 (Oklahoma Department of Rehabilitation Services);

$64,944 (US Department of Agriculture); FY 00 $33,000 (Southwest Center for Agricultural Health,

Injury Prevention and Education-NIOSH); FY 01 $100,000 (Oklahoma Department of Rehabilitation

Services); FY 00 $33,000 (Southwest Center for Agricultural Health, Injury Prevention and Education-NIOSH); FY 01 $100,000 (Oklahoma Department of Rehabilitation Services)

Abstract: The purpose of Oklahoma ABLE Tech is to increase access to assistive technology for

people of all ages and all disabilities through a variety of consumer-responsive systems change activities. ABLE Tech provides the core services of information and referral, AT training and technical

assistance, AT loan program and device reutilization program and AT advocacy, and works to improve

laws and policies providing access to assistive technology. Additionally, Oklahoma ABLE Tech

provides specific programs to assist persons with disabilities in acquiring AT. Two such programs that

provide low interest loans to purchase needed assistive technology are the Alternative Financing

Program and the Access to Telework Fund Program.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-55

State Technology Assistance Projects State Technology Assistance Projects

Oregon

Oregon Technology Access for Life Needs (TALN)

Oregon Disabilities Commission

c/o Access Technologies, Inc.

3070 Lancaster Drive Northeast

Salem, OR 97305-1396

info@accesstechnology.org

http://www.taln.org

Principal Investigator: Laurie Brooks, Project Director

Public Contact: 800/677-7512 (V/TTY, ); 503/361-1201 (V/TTY); ; Fax: 503/370-4530

Project Number: H224A50002

Start Date: April 01, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $540,000; FY 91 $555,000; FY 92 $575,000; FY 93 $620,000; FY 94

$670,000; FY 95 $670,000; FY 96 $620,212; FY 97 $658,212; FY 98 $493,659; FY 99 $329,106; FY

00 $329,106; FY 01 $329,106; FY 02 $329,106; FY 04 $329,106

Abstract: This project uses existing resources including community colleges, medical, rehabilitation,

educational, and recreational and adaptive sports programs, the state library system, federally funded

technology projects currently in existence in Oregon, and state agencies to expand the availability of

AT in Oregon. Projects include an exhibit to increase public awareness, a toll-free number for information and referral, training programs, equipment loan banks and demonstration labs, and a database on

used equipment.
9-56 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Pennsylvania

Pennsylvania’s Initiative on Assistive Technology (PIAT)

Temple University

Institute on Disabilities/UCDD

1301 Cecil B. Moore Avenue, 423 Ritter Annex

Philadelphia, PA 19122

piat@temple.edu

http://disabilities.temple.edu

Principal Investigator: Diane Nelson Bryen, PhD; Amy S. Goldman 215/204-1356

Public Contact: Amy S. Goldman 800/204-7428 (V) in state only; 215/204-5966 (V); 215/204-1356

(V/TTY); Fax: 215/204-9371

Project Number: H224A20006

Start Date: September 01, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $550,000; FY 93 $602,623; FY 94 $730,000; FY 95 $850,000; FY 96

$786,837; FY 97 $824,837; FY 98 $1,049,575; FY 99 $1,028,147; FY 00 $771,110; FY 01 $514,074;

FY 02 $514,074; FY 03 $514,074; FY 04 $514,074

Abstract: This project focuses on the creation of a consumer responsive system, supported by combined public and private resources, through which Pennsylvanians with disabilities (including older

Pennsylvanians) have access to the AT services and supports they need to contribute to and participate

fully in their communities. Major functional areas include public awareness, information and referral,

individual advocacy and systems change, and training. PIAT has established a network of regional

Assistive Technology Resource Centers (ATRCs). ATRCs are also a key to Pennsylvania’s Assistive

Technology Lending Library, a state funded program based on the pilot short-term equipment loan

program developed by PIAT.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-57

State Technology Assistance Projects State Technology Assistance Projects

Puerto Rico

Puerto Rico Assistive Technology Program

University of Puerto Rico

Jardin Botanico Sur 1187 Calle Flamboyan

San Juan, PR 00926-1117

pratp@pratp.upr.edu

http://www.pratp.upr.edu

Principal Investigator: Maria I. Miranda

Public Contact: 800/633-6035 (V/TTY, from the U.S.); 800/981-6033 (V/TTY, from Puerto Rico);

787/764-6035 (V); 787/764-6042 (V); 787/767-8642 (TTY); Fax: 787/754-8034

Project Number: H224A70001

Start Date: October 01, 1993

Length: 124 months

NIDRR Officer: Shelley Reeveso:

NIDRR Funding: FY 93 $500,000; FY 94 $545,000; FY 95 $555,000; FY 96 $513,758; FY 97

$551,758; FY 98 $692,202; FY 99 $670,774; FY 00 $670,774; FY 01 $503,081; FY 02 $335,387; FY

04 $335,387

Abstract: This project establishes a comprehensive, island-wide system of AT services to maximize

and enhance existing resources in Puerto Rico. This system is timely and consumer-responsive to the

needs of people with disabilities. The project’s main focus is to influence the system through collaborative efforts with public and private agencies to guarantee equal opportunity and access to AT by people

with disabilities in Puerto Rico. The Assistive Technology Program is administered by the University

of Puerto Rico, Office of the President, FILIUS Institute, Assistive Technology Institute.
9-58 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Rhode Island

Rhode Island Assistive Technology Access Partnership (ATAP)

Rhode Island Department of Human Services

Office of Rehabilitation Services

40 Fountain Street

Providence, RI 02903-1898

reginac@ors.ri.gov

http://www.atap.ri.gov

Principal Investigator: Raymond A. Carroll, Administrator

Public Contact: Regina Connor, Project Director 401/421-7005, ext. 390 (V); 401/421-7016 (TTY);

Fax: 401/222-3574

Project Number: H224A30012

Start Date: October 01, 1993

Length: 132 months

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 93 $500,000; FY 94 $500,000; FY 95 $500,000; FY 96 $500,000; FY 97

$538,000; FY 98 $624,467; FY 99 $603,039; FY 00 $603,039; FY 01 $452,279; FY 02 $301,520; FY

03 $301,520; FY 04 $301,520

Abstract: The Rhode Island Assistive Technology Access Partnership (ATAP) is a statewide partnership of organizations, each with a targeted focus, working together with a consumer council (Rhode

Island Council on Assistive Technology) to remove barriers and increase access to AT for individuals

with disabilities of all ages.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-59

State Technology Assistance Projects State Technology Assistance Projects

South Carolina

South Carolina Assistive Technology Program (SCATP)

University of South Carolina School of Medicine

Center for Disability Resources

Columbia, SC 29208

jjendron@usit.net; evelyne@cdd.sc.edu

http://www.sc.edu/scatp

Principal Investigator: Richard Ferrante 803/935-5231 (V)

Public Contact: Evelyn Evans, Project Director 803/935-5340 (V/TTY); Fax: 803/935-5342

Project Number: H224A60001

Start Date: October 01, 1991

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 91 $541,767; FY 92 $541,767; FY 93 $595,767; FY 94 $720,000; FY 95

$720,000; FY 96 $667,000; FY 97 $704,497; FY 98 $829,535; FY 99 $622,151; FY 00 $414,768; FY

01 $414,768; FY 02 $414,768; FY 03 $414,768; FY 04 $414,768

Abstract: This project is the catalyst for uniting AT services statewide into an easily accessible system

responsive to the needs of all South Carolinians with disabilities. SCATP collaborates with consumers,

educators, state agencies, policy-makers, and private entities to overcome barriers that prevent people

from getting the devices and services they need for full and productive lives. SCATP promotes increased access to assistive and information technology through various activities, including: 1) technical assistance and training for statewide service providers, physicians, therapists, teachers, university

and technical college students, agency administrators, consumers, their families and caregivers; 2)

information referral and public awareness through web page resources and publications and a list serve

networking consumers, service providers, private entities and agency administrators; 3) technical

assistance and coordination with public agencies and policy makers technical for policy development

to ensure that government electronic and information technology is more accessible to all South Carolinians, including those with disabilities; 4) a statewide equipment loan and demonstration center

equipment loan program making AT available to people with disabilities and service providers for trial

periods and hands-trial; 5) an annual statewide AT Expo and Conference; 6) technical assistance and

training to school districts as they develop more comprehensive AT programs and assessment capacity.
9-60 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

South Dakota

South Dakota Assistive Technology Project (DakotaLink)

DakotaLink

1925 Plaza Boulevard

Rapid City, SD 57702

rrosenboom@bhssc.tie.net

http://dakotalink.tie.net

Principal Investigator: Grady Kickul 605/773-3195 (V)

Public Contact: Ron Rosenboom 800/224-5336 (V/TTY, in state only); 605/347-4467 (V/TTY);

Fax: 605/347-5223

Project Number: H224A20019

Start Date: July 01, 1992

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 92 $520,000; FY 93 $520,000; FY 94 $620,000; FY 95 $650,000; FY 96

$601,699; FY 97 $601,699; FY 98 $728,100; FY 99 $700,000; FY 00 $525,000; FY 01 $353,336; FY

02 $353,336; FY 03 $353,336; FY 04 $353,336

Abstract: To achieve systems change, DakotaLink works with consumers, state and private agencies,

and organizations providing services to, or advocating for, people with disabilities to identify and

eliminate barriers to individuals receiving AT devices or services in a timely manner. The project uses

demonstration centers, outreach coordinators, rehabilitation technicians, and training programs as a

catalyst to: (1) reach the most underserved areas; (2) provide advocacy training for people with disabilities and their representatives; and (3) provide information support to all individuals regarding

access to, provision of, and funding for assistive technology devices and services. DakotaLink continues to use a Native American Outreach Coordinator to reach specifically that underserved population.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-61

State Technology Assistance Projects State Technology Assistance Projects

Tennessee

Tennessee Technology Access Project (TTAP)

TTAP

Tennessee Department of Human Services

Department of Rehabilitation Services

Citizen’s Plaza, 11th Floor; 400 Deadrick Street

Nashville, TN 37248

tn.ttap@state.tn.us

http://www.state.tn.us/humanserv/ttap_index.htm

Principal Investigator: Kevin R. Wright, Project Director

Public Contact: 800/732-5059; 615/532-3122 (V/TTY); Fax: 615/532-4685

Project Number: H224A010002

Start Date: July 01, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $550,000; FY 91 $553,675; FY 92 $553,675; FY 93 $640,800; FY 94

$665,000; FY 95 $665,000; FY 96 $615,584; FY 97 $653,584; FY 01 $326,792; FY 02 $326,792; FY

03 $326,792; FY 04 $326,792

Abstract: This project’s mission is to maintain a statewide program of technology-related assistance

that is timely, comprehensive, and consumer-driven to ensure that all Tennesseans with disabilities

have the information, services, and devices they need to make choices about where and how they

spend their time as independently as possible. TTAP and its five regional assistive technology centers,

located in Jackson, Knoxville, Chattanooga, Memphis, and Nashville, work daily toward that mission

by providing public awareness, evaluation, minority outreach, and advocacy services to individuals,

families, businesses, and government.
9-62 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Texas

Texas Technology Access Project

University of Texas at Austin

Texas Center for Disability Studies

4030 West Braker Lane; Building 2, Suite 220

Austin, TX 78759

john.moore@mail.utexas.edu

http://techaccess.edb.utexas.edu

Principal Investigator: Susanne Elrod, Project Director

Public Contact: John Moore 800/828-7839 (V/TTY, in state only); 512/232-0750 (V); 512/232-0762

(TTY); Fax: 512/232-0761

Project Number: H224A20012

Start Date: August 01, 1992

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 92 $550,000; FY 93 $550,000; FY 94 $550,000; FY 95 $850,000; FY 96

$786,837; FY 97 $824,837; FY 98 $1,167,518; FY 99 $1,146,080; FY 00 $859,566; FY 01 $573,044;

FY 02 $573,044; FY 03 $573,044; FY 04 $573,044

Abstract: This project promotes increased access to assistive and telecommunication technology

through technical assistance and training, information and public awareness activities, and coordination

with public agencies and policy makers.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-63

State Technology Assistance Projects State Technology Assistance Projects

U.S. Virgin Islands

U.S. Virgin Islands Technology-Related Assistance for Individuals with

Disabilities (TRAID)

University of the Virgin Islands

Virgin Islands Center for Excellence in Developmental Disabilities

2 John Brewer’s Bay

St. Thomas, USVI 00801-0990

sgrant@uvi.edu; wevans@uvi.edu

http://www.uvi.edu/pub-relations/resource.htm

Principal Investigator: Yegin Habtes 340/693-1323

Public Contact: Charlene Grant; Wanda Evans 340/693-1188 (Grant); 340/692-1919 (Evans); Fax:

340/693-1325

Project Number: H224A50005

Start Date: October 01, 1995

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 95 $150,000; FY 96 $150,000; FY 97 $150,000; FY 98 $150,000; FY 99

$105,000; FY 00 $105,000; FY 01 $105,000; FY 02 $105,000; FY 03 $105,000; FY 04 $105,000

Other Funding: FY 95 $6,400

Abstract: The Virgin Islands project disseminates necessary information on assistive technologies for

people with disabilities and provides a venue for device demonstration through the establishment of

two resource centers, on the islands of St. Thomas and St. Croix. The project is also initiating an AT

loan library.
9-64 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Utah

Utah Assistive Technology Program (UATP)

Utah State University

Center for Persons with Disabilities

6855 Old Main Hill

Logan, UT 84322-6855

uatp@cc.usu.edu

http://www.uatpat.org

Principal Investigator: Martin E. Blair, Program Director 435/797-3886

Public Contact: Lois Summers 435/797-3824 (V); Fax: 435/797-2355

Project Number: H224A90051

Start Date: November 01, 1989

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 89 $505,445; FY 90 $507,720; FY 91 $559,720; FY 92 $696,224; FY 93

$788,526; FY 94 $800,000; FY 95 $800,000; FY 96 $740,560; FY 97 $555,414; FY 98 $370,276; FY

99 $370,276; FY 00 $370,276; FY 01 $370,276; FY 02 $370,276; FY 03 $370,276; FY 04 $370,276

Abstract: The Utah Assistive Technology Program (UATP) provides expertise, resources, and a

structure to enhance and expand AT services provided by private and public agencies in Utah. This

occurs through professional training, device demonstration, policy monitoring and development,

interagency coordination, information dissemination, the identification and removal of barriers with

consumer groups, and expanding state resources. Primary components of UATP include: (1) the Utah

Center for Assistive Technology, a statewide service hub; (2) Assistive Technology Access Centers

located in rural centers for independent living; (3) outreach to underrepresented populations with

specific emphasis on those of Hispanic and Native American descent; (4) the Utah Assistive Technology Foundation providing zero-interest loans to consumers; (5) the Assistive Technology Council,

made up of state service agency representatives (usually the directors) and consumers that take appropriate action to remove barriers; and (6) consumer technical services and training provided by the

Assistive Technology Development and Fabrication Laboratory at Utah State University. UATP is

currently directing initiatives to: (a) expand the Utah Relay System and telephone equipment distribution system; (b) ensure accessible elections (both physical and procedural access); (c) improve access

of One Stop Centers (both facility and program access); and, (d) develop and provide ongoing, competency-based training to service providers and families in the early intervention and adult services

systems.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-65

State Technology Assistance Projects State Technology Assistance Projects

Vermont

Vermont Assistive Technology Project

Vermont Department of Aging and Disabilities

103 South Main Street, Weeks Building

Waterbury, VT 05671-2305

betsyr@dad.state.vt.us

http://www.dad.state.vt.us/atp

Principal Investigator: Julie Tucker, Project Director

Public Contact: 800/750-6355 (V/TTY, in state only); 802/241-2620 (V/TTY); Fax: 802/241-2174

Project Number: H224A00023

Start Date: July 01, 1990

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 90 $553,048; FY 91 $560,577; FY 92 $581,417; FY 93 $705,000; FY 94

$700,000; FY 95 $700,000; FY 96 $647,983; FY 97 $685,983; FY 98 $514,487; FY 99 $342,991; FY

00 $342,992; FY 01 $342,992; FY 02 $342,992; FY 03 $342,992; FY 04 $85,000

Other Funding: FY 03 $92,000 (Medicaid Infrastructure Grant)

Abstract: The Vermont Assistive Technology Project has regional centers for demonstration, trial, and

technical support for all types of assistive technology, including computer and augmentative communication equipment, as well as information and referral. The project affects change in policies and procedures of public and private agencies by providing AT expertise on boards and committees such as the

Developmental Services Communication Task Force, ADA Coalition, Telephone Equipment Distribution Program, etc. The Project advocates for visitable homes by educating consumers about Vermont’s

housing accessibility laws, which the Project was instrumental in passing. The Project supports an

annual AT institute for educators and presents many workshops in settings such as the Traumatic Brain

Injury Conference to raise awareness and institute AT knowledge and expertise into existing public

and private agencies. The Project also supports an AT Equipment Revolving Loan Fund Program

through a community credit union.
9-66 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Virginia

Virginia Assistive Technology System (VATS)

Virginia Department of Rehabilitative Services (DRS)

8004 Franklin Farms Drive; P.O. Box K-300

Richmond, VA 23288-0300

knorrkh@drs.state.va.us

http://www.vats.org

Principal Investigator: Kenneth Knorr, Project Director

Public Contact: 800/552-5019 (V/TTY); 804/662-9990 (V/TTY); Fax: 804/662-9478

Project Number: H224A00009

Start Date: June 01, 1990

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 90 $550,000; FY 91 $562,500; FY 92 $578,883; FY 93 $685,331; FY 94

$663,467; FY 95 $745,000; FY 96 $689,639; FY 97 $727,639; FY 98 $545,729; FY 99 $363,820; FY

00 $363,820; FY 01 $363,820; FY 02 $363,820; FY 03 $363,820; FY 04 $363,820

Abstract: The Virginia Assistive Technology System (VATS) provides coordination at two levels:

state policy, through the mechanism of interagency agreements and project management; and at the

local and regional level, through three AT regional sites. Activities include information and referral

services, technical assistance, training materials and seminars, and policy development. The project has

produced a textbook, Assistive Technology: A Resource for School, Work, and Community (Brookes

Publishing) and a National Study of Loan Financing Programs. This project participates in the Mid

Atlantic DBTACs Accessible Information Technology in Education program.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-67

State Technology Assistance Projects State Technology Assistance Projects

Washington

Washington Assistive Technology Alliance (WATA)

University of Washington

Center for Technology and Disability Studies (CTDS)

Box 357920

Seattle, WA 98195-7920

uwat@u.washington.edu

http://wata.org

Principal Investigator: Kurt Johnson, PhD 206/685-4181

Public Contact: Debbie Cook, Project Director 800/841-8345 (V/TTY, in state only); 206/685-4181

(V); 206/616-1396 (TTY); Fax: 206/543-4779

Project Number: H224A020001

Start Date: October 01, 2002

NIDRR Officer: Shelley Reeves

NIDRR Funding: FY 02 $308,072; FY 03 $359,105; FY 04 $359,106

Abstract: WATA promotes the use of assistive technology devices and services, and accessible information technology for people with disabilities, their families, caregivers, employers, teachers, and

health care and social service providers in Washington State. Activities for this project include information, consultation, and training related to selection of technology devices, services, and funding; legal

advice and advocacy; policy development; legislative action; technical consultation and training;

publications; and online resources. WATA includes the University of Washington Center for Technology and Disability Studies, The Governor’s Committee on Disability Issues and Employment, and the

AT Resource Center at Easter Seal Society in Spokane.
9-68 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

West Virginia

West Virginia Assistive Technology System (WVATS)

West Virginia University Center for Excellence in Disabilities

Airport Research and Office Park

955 Hartman Run Road

Morgantown, WV 26505

jcstewart@hsc.wvu.edu

TBA

Principal Investigator: Janice A. Holland 304/766-4694 (V)

Public Contact: Jack Stewart, Project Manager 800/841-8436 (V/TTY, in state only); 304/293-4692

(V/TTY); Fax: 304/293-7294

Project Number: H224A20011

Start Date: July 01, 1992

NIDRR Officer: Carol Cohen

NIDRR Funding: FY 92 $530,000; FY 93 $530,000; FY 94 $620,000; FY 95 $620,000; FY 96

$573,928; FY 97 $611,928; FY 98 $716,068; FY 99 $716,068; FY 00 $520,980; FY 01 $347,320; FY

02 $347,320; FY 03 $347,320; FY 04 $347,320

Abstract: The WVATS project seeks to improve the availability of AT by improving existing AT

services, facilitating coordination of AT service-delivery programs, identifying and remediating gaps in

services, and promoting, developing, and/or delivering new services. These systemic changes are

carried out in response to and consonant with consumer advice, direction, and consent. The West

Virginia project has a board composed primarily of consumers and their families. State organizations

and agencies provide guidance, structure, and input. WVATS uses a “core” system directed by a board,

overseen by the Division of Rehabilitation Services, and managed on a day-to-day basis by the Center

for Excellence in Disability at West Virginia University. WVATS supports program staff, an information and referral system with a toll-free number, two resource centers, a statewide awareness campaign,

training programs, and seven regional technology-related assistance teams.
NIDRR Program Directory FY 2004 - State Technology Assistance Projects 9-69

State Technology Assistance Projects State Technology Assistance Projects

Wisconsin

WisTech

Wisconsin Assistive Technology Program

Division of Supportive Living

1 West Wilson Street, Room 450; P.O. Box 7851

Madison, WI 53707-7851

lauxhm@dhfs.state.wi.us

/http://dhfs.wisconsin.gov/disabilities/wistech/

Principal Investigator: Holly Laux O’Higgins, Project Director and Contract Administrator 608/266-

8950

Public Contact: 608/266-8905 (V/TTY) (after 2/27/2004); 608/267-9880 (TTY); Fax: 608/267-3203

Project Number: H224A00013

Start Date: May 01, 1990

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 90 $572,871; FY 91 $575,000; FY 92 $590,313; FY 93 $685,488; FY 94

$730,000; FY 95 $730,000; FY 96 $675,754; FY 97 $713,754; FY 98 $535,315; FY 99 $356,877; FY

00 $356,877; FY 01 $356,877; FY 02 $356,877; FY 03 $356,877; FY 04 $356,877

Abstract: WisTech provides direct consumer services by contracting with eight Wisconsin Centers for

Independent Living, the Wisconsin Coalition for Advocacy (a Protection and Advocacy agency), and

AgrAbility. Consumer-direct services include AT assessments, maintenance of equipment loan closets,

assistance with locating funding for AT, among other services. WisTech incorporations consumer

control and involvement by working with the WisTech Advisory Board, comprised of at least 51

percent consumers or parents, and service providers.
9-70 NIDRR Program Directory FY 2004 - State Technology Assistance Projects

State Technology Assistance Projects State Technology Assistance Projects

Wyoming

Wyoming’s New Options in Technology (WYNOT)

University of Wyoming

Wyoming INstitute for Disabilities

University of Wyoming 1000 E. University Avenue

Laramie, WY 82071

wynot.uw@uwyo.edu

http://wind.uwyo.edu/wynot

Principal Investigator: Keith Miller, PhD 307/766-2761 (V)

Public Contact: 800/861-4312 (V/TTY, in state only); 307/766-2761(V), 307/766-2720(TTY); Fax:

307/766-2763

Project Number: H224A60002

Start Date: October 01, 1993

Length: 144 months

NIDRR Officer: Richard Johnson, EdD

NIDRR Funding: FY 94 $500,000; FY 95 $500,000; FY 96 $500,000; FY 97 $500,000; FY 98

$620,502; FY 99 $599,074; FY 00 $599,074; FY 01 $449,306; FY 02 $336,979; FY 03 $299,537; FY

04 $299,537

Abstract: The mission of WYNOT is to build statewide capacity for universal access to assistive

technology for all of Wyoming and to establish a self-sustaining system that will continue to meet the

state’s need for assistive technology after Federal funding for WYNOT has ended. In pursuing this

mission, WYNOT provides training and technical assistance to statewide and community-based

organizations to enhance their capacity to meet the assistive technology needs of individuals with

disabilities. WYNOT also provides technical assistance and training for consumers. The project

operates a demonstration center, loan bank and information and referral service.