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[Congressional Bills 118th Congress]
[From the U.S. Government Publishing Office]
[S. 5311 Introduced in Senate (IS)]

<DOC>

118th CONGRESS
  2d Session
                                S. 5311

To require the public release of all research supported by the National 
                         Institutes of Health.

_______________________________________________________________________

                   IN THE SENATE OF THE UNITED STATES

                           November 13, 2024

  Mr. Kennedy introduced the following bill; which was read twice and 
  referred to the Committee on Health, Education, Labor, and Pensions

_______________________________________________________________________

                                 A BILL

 
To require the public release of all research supported by the National 
                         Institutes of Health.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Scientific Research Accessibility 
and Transparency Act of 2024''.

SEC. 2. FINDINGS.

    Congress finds as follows:
            (1) According to the New York Times article, ``U.S. Study 
        on Puberty Blockers Goes Unpublished Because of Politics, 
        Doctor Says'' (October 23, 2024)--
                    (A) Dr. Johanna Olson-Kennedy led a study funded by 
                the National Institutes of Health concluding that the 
                mental health of children with gender dysmorphia did 
                not improve after taking puberty blockers;
                    (B) Dr. Olson-Kennedy's team has delayed the 
                release of data from this study because it may be used 
                for political causes with which she personally 
                disagrees;
                    (C) the project associated with Dr. Olson-Kennedy's 
                study has received $9,700,000 in government funding; 
                and
                    (D) the National Institutes of Health lets 
                researchers independently decide how and when to 
                publish their findings.
            (2) Scientific researchers in the United States have a duty 
        to release properly collected scientific data, even if such 
        data does not comport with the political interests of the 
        researchers.
            (3) The American public has a right to access data that was 
        collected using taxpayer dollars, regardless of the political 
        interests of the researchers collecting the data.

SEC. 3. PUBLICATION OF NIH RESEARCH.

    Part B of title IV of the Public Health Service Act (42 U.S.C. 284 
et seq.) is amended by adding at the end the following:

``SEC. 409K. PUBLICATION OF RESEARCH.

    ``(a) In General.--With respect to any research conducted by the 
National Institutes of Health or with the support of funding made 
available by the National Institutes of Health, not later than 1 year 
after the conclusion of the research, the National Institutes of Health 
or the person receiving such funding, as applicable, shall make 
available for publication on the website of the National Institutes of 
Health, and the National Institutes of Health shall publish on such 
website, in an easily accessible manner--
            ``(1) a report on such research; or
            ``(2) if the person conducting such research does not 
        complete a report on the research, all raw data collected 
        through the research.
    ``(b) Noncompliance.--Any person that does not comply with the 
requirements of subsection (a) shall be ineligible for funding from the 
National Institutes of Health for a period of 5 years, beginning on the 
date on which the report or raw data was required to be made available 
for publication in accordance with subsection (a).''.
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