I

103D CONGRESS

2D SESSION H. R. 5022

To amend title 38, United States Code, to direct the Secretary of Veterans

Affairs to establish a permanent, confidential database and toll-free telephone line for the collection of medical information concerning members

of the Armed Forces and veterans.

IN THE HOUSE OF REPRESENTATIVES

SEPTEMBER 12, 1994

Mr. GEJDENSON introduced the following bill; which was referred to the

Committee on Veterans’ Affairs

A BILL

To amend title 38, United States Code, to direct the Secretary of Veterans Affairs to establish a permanent, confidential database and toll-free telephone line for the

collection of medical information concerning members of

the Armed Forces and veterans.

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled,

3 SECTION 1. VETERANS’ MEDICAL DATABASE.

4 (a) IN GENERAL.—Chapter 17 of title 38, United

5 States Code, is amended by adding at the end of sub6 chapter I the following new section:
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1 ‘‘§ 1705. Confidential medical history database

2 ‘‘(a) In order to provide information for the detection

3 of patterns of illnesses among members of the Armed

4 Forces and veterans, the Secretary shall maintain a

5 database consisting of the medical histories of individuals

6 described in subsection (c), together with their military

7 service histories and relevant personal information. The

8 Secretary shall ensure that the information in the

9 database is maintained in a format that is compatible with

10 information in other health registries maintained by the

11 Secretary.

12 ‘‘(b) The Secretary shall regularly monitor the

13 database for patterns of illnesses that may correlate to

14 military service or to military service in particular areas,

15 at particular times, or in particular service specialities.

16 ‘‘(c) The database shall be compiled concerning the

17 medical history of individuals who as members of the

18 Armed Forces are deployed for any operational mission

19 (beginning with the operation in Somalia in 1992–1993)

20 and the spouses and children of those members.

21 ‘‘(d) Information may be included in the database

22 concerning an individual only with the permission of that

23 individual (or, in the case of a child, a parent of that

24 child). The identity of any individual providing informa25 tion for inclusion in the database of information shall be

26 confidential, and information provided by any such indi-
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1 vidual may not, without the consent of that individual, be

2 disclosed outside the Department or to any other entity

3 within the Department in a manner that would enable the

4 identification of the individual providing the information.

5 ‘‘(e)(1) The Secretary shall maintain a toll-free tele6 phone number to be available for members of the Armed

7 Forces and veterans to report to the Secretary information

8 for inclusion in the database. The Secretary shall staff the

9 number with employees of the Department. Employees

10 staffing the number shall obtain information for the

11 database relating to symptoms and medical history, mili12 tary service history, and personal information in as uni13 form manner as possible.

14 ‘‘(2) In establishing the toll-free telephone number re15 porting system under paragraph (1), the Secretary shall

16 consult with the Secretary of Defense and representatives

17 of veterans service organizations recognized by the Sec18 retary under section 5902 of this title to determine the

19 appropriate information to be sought from members and

20 veterans calling that number.

21 ‘‘(f) With the permission of the member or veteran,

22 the Secretary shall include in the database information

23 concerning a member or veteran (or the spouse or child

24 of the member or veteran) from the following sources:
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1 ‘‘(1) A claim for disability benefits filed with

2 the Department.

3 ‘‘(2) A medical history in the custody of the

4 Secretary of Defense.

5 ‘‘(3) Information from health screenings con6 ducted by the Secretary.

7 ‘‘(g) The Secretary shall (subject to subsection (d))

8 make information in the database available to accredited

9 institutions of higher education and any other institution

10 the Secretary considers appropriate for medical studies

11 and related research activities. The Secretary shall make

12 available to such institutions general statistical informa13 tion concerning information in the database.

14 ‘‘(h) The Secretary shall submit to the Committees

15 on Veterans’ Affairs of the Senate and House of Rep16 resentatives an annual report on the operation of the

17 database and the toll-free telephone number under this

18 section. The Secretary shall include in the report—

19 ‘‘(1) information on the number of persons pro20 viding information for inclusion in the database;

21 ‘‘(2) the current status of monitoring of the

22 database under subsection (b) for detection of pat23 terns of illnesses; and
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1 ‘‘(3) the types of illnesses recorded in the

2 database and the number of cases of each such ill3 ness.’’.

4 (b) CLERICAL AMENDMENT.—The table of sections

5 at the beginning of such chapter is amended by inserting

6 after the item relating to section 1704 the following new

7 item:

‘‘1705. Confidential medical history database.’’.

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