III 

110TH CONGRESS 

2D SESSION S. RES. 510 

Supporting the goals and ideals of National Cystic Fibrosis Awareness Month. 

IN THE SENATE OF THE UNITED STATES 

APRIL 10, 2008 

Mrs. MURRAY (for herself and Mr. INHOFE) submitted the following resolution; which was referred to the Committee on Health, Education, Labor, 

and Pensions 

RESOLUTION 

Supporting the goals and ideals of National Cystic Fibrosis 

Awareness Month. 

Whereas cystic fibrosis is one of the most common life-threatening genetic diseases in the United States and one for 

which there is no known cure; 

Whereas the average life expectancy of an individual with cystic fibrosis is 37 years, an improvement from a life expectancy in the 1960s where children did not live long 

enough to attend elementary school, but still unacceptably short; 

Whereas approximately 30,000 people in the United States 

have cystic fibrosis, more than half of them children; 

Whereas 1 of every 3,500 babies born in the United States 

is born with cystic fibrosis; 


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•SRES 510 IS 

Whereas more than 10,000,000 Americans are unknowing, 

symptom-free carriers of the cystic fibrosis gene; 

Whereas the Centers for Disease Control and Prevention recommend that all States consider newborn screening for 

cystic fibrosis; 

Whereas the Cystic Fibrosis Foundation urges all States to 

implement newborn screening for cystic fibrosis to facilitate early diagnosis and treatment which improves health 

and life expectancy; 

Whereas prompt, aggressive treatment of the symptoms of 

cystic fibrosis can extend the lives of people who have the 

disease; 

Whereas recent advances in cystic fibrosis research have produced promising leads in gene, protein, and drug therapies beneficial to people who have the disease; 

Whereas innovative research is progressing faster and is 

being conducted more aggressively than ever before, due, 

in part, to the Cystic Fibrosis Foundation’s establishment of a model clinical trials network; 

Whereas, although the Cystic Fibrosis Foundation continues 

to fund a research pipeline for more than 30 potential 

therapies and funds a nationwide network of care centers 

that extend the length and quality of life for people with 

cystic fibrosis, lives continue to be lost to this disease 

every day; 

Whereas education of the public about cystic fibrosis, including the symptoms of the disease, increases knowledge and 

understanding of cystic fibrosis and promotes early diagnosis; and 


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•SRES 510 IS 

Whereas the Cystic Fibrosis Foundation will conduct activities to honor National Cystic Fibrosis Awareness Month 

in May 2008: Now, therefore, be it 

1 Resolved, That the Senate— 

2 (1) honors the goals and ideals of National Cys3 tic Fibrosis Awareness Month; 

4 (2) supports the promotion of further public 

5 awareness and understanding of cystic fibrosis; 

6 (3) encourages early diagnosis and access to 

7 quality care for people with cystic fibrosis to improve 

8 the quality of their lives; and 

9 (4) supports research to find a cure for cystic 

10 fibrosis by fostering an enhanced research program 

11 through a strong Federal commitment and expanded 

12 public-private partnerships. 

Æ 


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