[Federal Register Volume 76, Number 160 (Thursday, August 18, 2011)]
[Notices]
[Pages 51375-51376]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2011-21092]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Secretary's Advisory Committee on Heritable Disorders in Newborns 
and Children; Notice of Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Pub. L. 92-463, codified at 5 U.S.C. App. 2), notice is 
hereby given of the following meeting:
    Name: Secretary's Advisory Committee on Heritable Disorders in 
Newborns and Children.
    Dates and Times: September 22, 2011, 8:30 a.m. to 5 p.m.; September 
23, 2011, 8:30 a.m. to 3:30 p.m.
    Place: Renaissance Washington, DC DuPont Circle Hotel, 1143 New 
Hampshire Avenue, NW., Washington, DC 20037.
    Status: The meeting will be open to the public with attendance 
limited due to space availability. Participants are asked to register 
for the meeting by going to the registration Web site at http://altarum.cvent.com/event/SACHDNC092011. The registration deadline is 
Tuesday, September 20, 2011. Individuals who need special assistance, 
such as sign language interpretation or other reasonable 
accommodations, should indicate their needs on the registration 
website. The deadline for special accommodation requests is Friday, 
September 19, 2011. If there are technical problems gaining access to 
the Web site, please contact Maureen Ball, Meetings Coordinator, at 
<a href="/cdn-cgi/l/email-protection#6b0804050d0e190e05080e182b0a071f0a191e064504190c"><span class="__cf_email__" data-cfemail="23404c4d454651464d40465063424f574251564e0d4c5144">[email protected]</span></a>.
    Purpose: The Secretary's Advisory Committee on Heritable Disorders 
in Newborns and Children (Advisory Committee) was established by 
Congress to advise and guide the Secretary regarding the most 
appropriate application of universal newborn screening tests, 
technologies, policies, guidelines and programs for effectively 
reducing morbidity and mortality in newborns and children having (or at 
risk) for heritable disorders. The Advisory Committee, as authorized by 
Public Law 106-310, which added

[[Page 51376]]

section 1111 of the Public Health Service Act, codified at 42 U.S.C. 
300b-10, also provides advice and recommendations concerning grants and 
projects authorized under section 1109 of the Public Health Service Act 
(42 U.S.C. 300b-8).
    Agenda: The meeting will include a review and reflection of the 
previous 24 meetings and a look forward. The agenda will include topics 
related to the past, present, and future work of the Committee, 
including: (1) A presentation of the previous, current and future 
endeavors of the External Review Workgroup's activities; (2) an update 
from the Evidence Evaluation and Methods workgroup's progress on 
developing the Decision Process Tree; (3) review of previous reports, 
workgroups and publications from the Committee and next steps for 
public health genetics; and (4) discussion and presentations on the 
previous and continued work and reports of the Advisory Committee's 
subcommittees on laboratory standards and procedures, follow-up and 
treatment, and education and training. Proposed agenda items are 
subject to change as priorities dictate. You can locate the Agenda, 
Committee Roster and Charter, presentations, and meeting materials at 
the home page of the Advisory Committee's Web site at http://www.hrsa.gov/heritabledisorderscommittee/.
    Public Comments: This meeting will include an extended public 
comment period during the morning session on September 22, 2011. 
Members of the public can submit written comments and/or present oral 
comments during the public comment period of the meeting. Those 
individuals who want to make oral comments are requested to register 
online by Tuesday, September 20, 2011, at http://altarum.cvent.com/event/SACHDNC092011. Requests should contain the name, address, 
telephone number, and any professional or business affiliation of the 
person desiring to make an oral comment. Groups having similar 
interests are requested to combine their comments and present them 
through a single representative. Written comments should be e-mailed no 
later than Tuesday, September 20, 2011 for consideration. Oral and 
written public comment will be included in the transcripts of the 
meeting and will be posted to the committee's Web site. Written 
comments should contain the name, address, telephone number, and any 
professional or business affiliation of the author. Submit written 
comments to Maureen Ball, Meetings Coordinator, Conference and Meetings 
Management, Altarum Institute, 1200 18th Street, NW., Suite 700, 
Washington, DC 20036, telephone: 202 828-5100; fax: 202 785-3083, or e-
mail: <a href="/cdn-cgi/l/email-protection#84e7ebeae2e1f6e1eae7e1f7c4e5e8f0e5f6f1e9aaebf6e3"><span class="__cf_email__" data-cfemail="42212d2c242730272c21273102232e362330372f6c2d3025">[email protected]</span></a>.
    Contact Person: Anyone interested in obtaining other relevant 
information should write or contact Alaina M. Harris, Maternal and 
Child Health Bureau, Health Resources and Services Administration, Room 
18A-19, Parklawn Building, 5600 Fishers Lane, Rockville, Maryland 
20857, Telephone (301) 443-0721, <a href="/cdn-cgi/l/email-protection#016069607373687241697372602f666e77"><span class="__cf_email__" data-cfemail="284940495a5a415b68405a5b49064f475e">[email protected]</span></a>. More information on 
the Advisory Committee is available at http://mchb.hrsa.gov/heritabledisorderscommittee.

    Dated: August 12, 2011.
Reva Harris,
Acting Director, Division of Policy and Information Coordination.
[FR Doc. 2011-21092 Filed 8-17-11; 8:45 am]
BILLING CODE 4165-15-P


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