I 

108TH CONGRESS 

1ST SESSION H. R. 3438

To provide for programs to increase the awareness and knowledge of women 

and health care providers with respect to gynecologic cancers. 

IN THE HOUSE OF REPRESENTATIVES 

NOVEMBER 4, 2003

Mr. LEVIN (for himself, Ms. GRANGER, Ms. DELAURO, Mrs. WILSON of New 

Mexico, Mr. ABERCROMBIE, Ms. BALDWIN, Mr. BACHUS, Mr. BELL, Mr. 

BISHOP of New York, Mr. BURGESS, Mr. CUMMINGS, Mr. DEUTSCH, Mr. 

FALEOMAVAEGA, Mr. FRANK of Massachusetts, Mr. FROST, Ms. HART, 

Mr. HONDA, Mr. ISRAEL, Mr. KILDEE, Mr. LATOURETTE, Ms. 

LOFGREN, Mrs. MALONEY, Mr. MATSUI, Mrs. MCCARTHY of New York, 

Ms. MCCOLLUM, Mr. MCDERMOTT, Mr. MCHUGH, Mr. MCNULTY, Mr. 

MENENDEZ, Mr. MORAN of Virginia, Mr. NADLER, Mr. OWENS, Ms. 

SLAUGHTER, Mr. TOWNS, Mrs. JONES of Ohio, Mr. WAXMAN, Mr. 

WEXLER, and Mr. WYNN) introduced the following bill; which was referred to the Committee on Energy and Commerce 

A BILL

To provide for programs to increase the awareness and 

knowledge of women and health care providers with respect to gynecologic cancers.

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled,
2

•HR 3438 IH 

1 SECTION 1. SHORT TITLE. 

2 This Act may be cited as the ‘‘Gynecologic Cancer 

3 Education and Awareness Act of 2003’’ or ‘‘Johanna’s 

4 Law’’. 

5 SEC. 2. CERTAIN PROGRAMS REGARDING GYNECOLOGIC 

6 CANCERS. 

7 (a) NATIONAL PUBLIC AWARENESS CAMPAIGN.—

8 (1) IN GENERAL.—The Secretary of Health and 

9 Human Services (referred to in this section as the 

10 ‘‘Secretary’’), acting through the Director of the Na11 tional Institutes of Health and in collaboration with 

12 the Director of the Centers for Disease Control and 

13 Prevention, shall carry out a national campaign to 

14 increase the awareness and knowledge of women 

15 with respect to gynecologic cancers. 

16 (2) WRITTEN MATERIALS.—Activities under the 

17 national campaign under paragraph (1) shall in18 clude—

19 (A) maintaining a supply of written mate20 rials that provide information to the public on 

21 gynecologic cancers; and 

22 (B) distributing the materials to members 

23 of the public upon request. 

24 (3) PUBLIC SERVICE ANNOUNCEMENTS.—Ac25 tivities under the national campaign under para26 graph (1) shall, in accordance with applicable law 
3

•HR 3438 IH 

1 and regulations, include developing and placing, in 

2 telecommunications media, public service announce3 ments intended to encourage women to discuss with 

4 their physicians their risks of gynecologic cancers. 

5 Such announcement shall inform the public on the 

6 manner in which the written materials referred to in 

7 paragraph (2) can be obtained upon request, and 

8 shall call attention to early warning signs and risk 

9 factors based on the best available medical informa10 tion. 

11 (b) DEMONSTRATION PROJECTS REGARDING OUT12 REACH AND EDUCATION STRATEGIES.—

13 (1) IN GENERAL.—The Secretary, acting 

14 through the Director of the National Institutes of 

15 Health and the Director of the Centers for Disease 

16 Control and Prevention, shall carry out a program 

17 to make grants to nonprofit private entities for the 

18 purpose of testing different outreach and education 

19 strategies to increase the awareness and knowledge 

20 of women and health care providers with respect to 

21 gynecologic cancers, including early warning signs 

22 and treatment options. Such strategies shall include 

23 strategies directed at physicians, nurses, and key 

24 health professionals and families. 
4

•HR 3438 IH 

1 (2) PREFERENCES IN MAKING GRANTS.—In 

2 making grants under paragraph (1), the Secretary 

3 shall give preference—

4 (A) to applicants with demonstrated exper5 tise in gynecologic cancer education or treat6 ment or in working with groups of women who 

7 are at especially high risk of gynecologic can8 cers; and 

9 (B) to applicants that, in the demonstra10 tion project under the grant, will establish link11 ages between physicians, nurses, and key health 

12 professionals, hospitals, payers, and State 

13 health departments. 

14 (3) APPLICATION FOR GRANT.—A grant may be 

15 made under paragraph (1) only if an application for 

16 the grant is submitted to the Secretary and the ap17 plication is in such form, is made in such manner, 

18 and contains such agreements, assurances, and in19 formation as the Secretary determines to be nec20 essary to carry out this subsection. 

21 (4) CERTAIN REQUIREMENTS.—In making 

22 grants under paragraph (1)—

23 (A) the Secretary shall make grants to not 

24 fewer than five applicants, subject to the extent 
5

•HR 3438 IH 

1 of amounts made available in appropriations 

2 Acts; and 

3 (B) the Secretary shall ensure that infor4 mation provided through demonstration projects 

5 under such grants is consistent with the best 

6 available medical information. 

7 (5) REPORT TO CONGRESS.—Not later than 

8 February 1, 2008, the Secretary shall submit to the 

9 Congress a report that—

10 (A) summarizes the activities of dem11 onstration projects under paragraph (1); 

12 (B) evaluates the extent to which the 

13 projects were effective in increasing early detec14 tion of gynecologic cancers and awareness of 

15 risk factors and early warning signs in the pop16 ulations to which the projects were directed; 

17 and 

18 (C) identifies barriers to early detection 

19 and appropriate treatment of such cancers. 

20 (c) FUNDING.—

21 (1) NATIONAL PUBLIC AWARENESS CAM22 PAIGN.—For the purpose of carrying out subsection 

23 (a), there is authorized to be appropriated in the ag24 gregate $15,000,000 for the fiscal years 2004 

25 through 2006. 
6

•HR 3438 IH 

1 (2) DEMONSTRATION PROJECTS REGARDING

2 OUTREACH AND EDUCATION STRATEGIES.—

3 (A) AUTHORIZATION OF APPROPRIA4 TIONS.—For the purpose of carrying out sub5 section (b), there is authorized to be appro6 priated in the aggregate $55,000,000 for the 

7 fiscal years 2004 through 2006. 

8 (B) ADMINISTRATION, TECHNICAL ASSIST9 ANCE, AND EVALUATION.—Of the amounts ap10 propriated under subparagraph (A), not more 

11 than 9 percent may be expended for the pur12 pose of administering subsection (b), providing 

13 technical assistance to grantees under such sub14 section, and preparing the report under para15 graph (5) of such subsection.

Æ