Series 1, Number 52 March 2011

Design and Operation of

the Survey of Adult Transition

and Health, 2007 
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reproduced or copied without permission; citation as to source, however, is

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Suggested citation

O’Connor KS, Brooks KS, Nysse-Carris KL, et al. Design and operation of the

Survey of Adult Transition and Health, 2007. National Center for Health

Statistics. Vital Health Stat 1(52). 2011.

Library of Congress Cataloging-in-Publication Data

Design and operation of the Survey of Adult Transition and Health, 2007.

p. ; cm. — (Vital and health statistics, Series 1, Programs and collection

procedures ; no. 52) (DHHS publication ; no. (PHS) 2011–1328)

‘‘March 2011.’’

Includes bibliographical references.

ISBN-13: 978–0–8406–0637–2

ISBN-10: 0–8406–0637–0

1. Survey of Adult Transition and Health (U.S.) 2. National Survey of Children

with Special Health Care Needs (U.S.) 3. Health surveys—United States—

Methodology. 4. Telephone surveys—United States—Methodology. 5. Youth with

disabilities—Health and hygiene—United States—Research—Methodology. 6.

Youth with disabilities—Care—United States—Research—Methodology. I.

National Center for Health Statistics (U.S.) II. Series: Vital and health statistics.

Ser. 1, Programs and collection procedures ; no. 52. III. Series: DHHS

publication ; no. (PHS) 2011–1328.

[DNLM: 1. Survey of Adult Transition and Health (U.S.) 2. Health Servies—

United States—Statistics. 3. Disabled Persons—United States—Statistics. 4.

Health Care Surveys—United States—Statistics. 5. Needs Assessment—

United States—Statistics. 6. Young Adult—United States—Statistics.

W2 A N148va no.52 2011]

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Series 1, Number 52

Design and Operation of

the Survey of Adult Transition

and Health, 2007

Program and Collection Procedures

U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES

Centers for Disease Control and Prevention

National Center for Health Statistics

Hyattsville, Maryland

March 2011

DHHS Publication No. (PHS) 2011–1329
National Center for Health Statistics

Edward J. Sondik, Ph.D., Director

Jennifer H. Madans, Ph.D., Associate Director for Science

Division of Health Interview Statistics

Jane F. Gentleman, Ph.D., Director
Contents
 

Abstract . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 
 

Introduction ............................................................................................... 1 
 

Organization of Report .................................................................................... 1 
 

State and Local Area Integrated Telephone Survey.............................................................. 2 
 

CSHCN and Transition Services .............................................................................. 2 
 

Who Are CSHCN? ....................................................................................... 2 
 

Health Care Transition .................................................................................... 2 
 

Significance of Transition Services .......................................................................... 3 
 

Sample Design............................................................................................. 3 
 

Target Age Group . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 3 
 

Imperative and Standard Cases.............................................................................. 3 
 

Proxy Interviews . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4 
 

Questionnaire .............................................................................................. 4 
 

Development ............................................................................................ 4 
 

Content of Detailed SATH Interview ......................................................................... 4 
 

Computer-assisted Telephone Interviewing .................................................................... 4 
 

Internet Questionnaire ..................................................................................... 5 
 

Pretest. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6 
 

Interviewer Training ........................................................................................ 6 
 

CATI Training .......................................................................................... 6 
 

Locating Training ........................................................................................ 6 
 

Interviews via Respondent’s Cellular Telephone ................................................................ 6 
 

Security and Confidentiality ................................................................................ 7 
 

Data Collection . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7 
 

Advance Letter .......................................................................................... 7 
 

SATH Screening, Locating, and Interviewing Processes.......................................................... 7 
 

Endorsement and Internet Offer Letters ...................................................................... 7 
 

Toll-free Telephone Number ................................................................................ 8 
 

Informed Consent and Assurance of Confidentiality ............................................................. 8 
 

Interview and Section Length ............................................................................... 9 
 

Partially Completed Interviews ............................................................................. 9 
 

Third Party Present During Interview ........................................................................ 9 
 

Monetary Incentives and Thank You Letters ................................................................... 9 
 

Efforts to Maximize Response Rates ........................................................................ 9 
 

Interview Completion Rate ................................................................................ 10 
 

Quality Control ........................................................................................... 10 
 

Interviewing ........................................................................................... 10 
 

Interviewer Debriefing ................................................................................... 10 
 

Data Collection . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11 
 

Weighting and Estimation Procedures ......................................................................... 11 
 

Sampling Weight ........................................................................................ 11 
 

iii
Weighting Objective and Process ........................................................................... 11 
 

Estimation ............................................................................................. 12 
 

Public-use Data File . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13 
 

Edits to Protect Confidentiality............................................................................. 13 
 

Other Edits. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13 
 

Missing Data .......................................................................................... 13 
 

Derived Variables ....................................................................................... 14 
 

Citations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 14 
 

Further Information . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 14 
 

Guidelines for Data Use . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 15 
 

References ............................................................................................... 15 
 

Appendix I. Summary of Survey Strengths, Limitations, and Appropriate Use......................................... 18 
 

Strengths .............................................................................................. 18 
 

Limitations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18 
 

Appropriate Use......................................................................................... 18 
 

Appendix II. Locating Protocol for 2001 Respondents and 2007 Eligible Cases ....................................... 19 
 

Use of Detailed Locating Protocol .......................................................................... 19 
 

Locating Training ....................................................................................... 19 
 

Identifying Cases Qualified for Locating ..................................................................... 19 
 

Types of Accurintt Database Searches....................................................................... 19 
 

Locating Protocol ....................................................................................... 20 
 

Locating Quality Control ................................................................................. 21 
 

Overall Locating Results.................................................................................. 23 
 

Number of Calls Placed to Locate Cases..................................................................... 23 
 

Appendix III. 2007 SATH Questionnaire ...................................................................... 24 
 

Appendix IV. 2007 SATH Endorsement Letters ................................................................. 78 
 

Appendix V. Internet Offer Letter ............................................................................ 82 
 

Appendix VI. Thank You Letters ............................................................................ 83 
 

Appendix VII. Disposition Code Frequencies and Unweighted Interview Completion Rate Calculation .................... 85 
 

Text Figures

General process flow: 2007 SATH............................................................................. 8 
 

Text Tables

A.	 Maximum subgroup sample sizes of respondents aged 14–17 years, by transition services received: 2001 NS-CSHCN
 

completed cases, 2007 SATH........................................................................... 4 
 

B.	 Parts of survey screener component: 2007 SATH........................................................... 5 
 

C.	 Content of survey detailed interview: 2007 SATH .......................................................... 5 
 

D.	 Length of survey interview, by section: 2007 SATH ....................................................... 9 
 

E.	 Interview completion rates, by sample type: 2007 SATH ................................................... 10 
 

F.	 Summary statistics for final interview weight: 2007 SATH.................................................. 12 
 

G.	 Description of derived variables in public-use data file: 2007 SATH .......................................... 15 
 

Appendix Figures

Case flow through locating searches and protocol: 2007 SATH..................................................... 22 
 

Appendix Tables

I	 Survey call outcomes and number of cases qualified for locating: 2007 SATH ................................. 20 
 

II.	 Accurintt return rates, by sample type: 2007 SATH ...................................................... 21 
 

III.	 Locating and interviewing success rates for all cases, by sample type: 2007 SATH .............................. 21 
 

IV.	 Locating and interviewing success rates for cases with Accurintt information, by sample type: 2007 SATH.......... 21 
 

V.	 Source of locating information, by sample type: 2007 SATH ................................................ 23 
 

VI.	 Unweighted distribution of final case dispositions: 2007 SATH ............................................. 85 
 

iv
Acknowledgments
 

The Survey of Adult Transition and

Health, sponsored by the Health

Resources and Services Administration,

Maternal and Child Health Bureau, was

conducted by the Centers for Disease

Control and Prevention, National Center

for Health Statistics (NCHS). The

NCHS project director was Marcie

Cynamon. Design, production, and

analysis assistance for this project was

provided by Stephen Blumberg,

Matthew Bramlett, Julian Luke,

Kathleen O’Connor, Heather Brown, and

Rosa Avila.

The National Opinion Research

Center at the University of Chicago

conducted all interviews for the project.

Technical assistance was contributed by

Kimberly Brown, Kevin Lynch,

Christopher Samp, and John Weld.

Patrick Cagney, Eric Lopez, Heather

Morrison, Eloise Parker, and

Kirk Wolter provided management

support.

This report was edited by

Jane Sudol, Demarius Miller, and

Laura Drescher of CDC/NCHM/

Division of Creative Services,

Writer-Editor Services Branch, and

typeset by Jacqueline M. Davis of

CDC/OSELS/NCHS/OD/Office of

Information Services, Information

Design and Publishing Staff. Graphics

were produced by Zorica Tomic-Whalen

of CDC/OSELS/NCHS/OD/Office of

Information Services, Information

Design and Publishing Staff, NOVA

contractor.

We sincerely thank the young adult

respondents and their parents or

guardians who allowed us to contact

them directly. Their time and effort

made this projecta reality.

v
Objectives

This report documents the survey

design and operating procedures for

the 2007 Survey of Adult Transition and

Health (SATH). Sponsored by the

Maternal and Child Health Bureau of

the Health Resources and Services

Administration, SATH was conducted by

the Centers for Disease Control and

Prevention’s National Center for Health

Statistics as a module of the State and

Local Area Integrated Telephone Survey

program. A follow-back survey design

was used to attempt to locate and

contact 10,933 eligible cases originally

identified in the 2001 National Survey of

Children with Special Health Care

Needs (NS-CSHCN). These data

examine the transition experience of

adolescents as they switched from

pediatric health care providers to those

that treat adults only. Eligible persons

were aged 14–17 years as of 2001,

had at least one special health care

need, and lived in English-speaking

households. In 2007, these cases

involved young adults aged 19–23.

State estimates cannot be obtained

from SATH.

Methods

Telephone numbers sampled in 2001

were dialed to locate the 2001

NS-CSHCN respondent. This person

was asked for current contact

information for the eligible SATH young

adult to be contacted directly. Data

were collected from June 12 through

August 26, 2007.

Results

Although we were unable to contact

7,409 (68%) of the 2001 parent/

guardian respondents, almost all of the

young adults we were able to contact

participated (98%). The SATH

public-use microdata file contains

interview data collected in 2007 from

1,865 young adults, along with

variables from the 2001 NS-CSHCN

public-use file. The unweighted

interview completion rate was 17.5%.

Keywords: follow-back surveys c

children with special health care

needs c State and Local Area

Integrated Telephone Survey

(SLAITS) c young adults

Design and Operation of the

Survey of Adult Transition and

Health, 2007

Kathleen S. O’Connor, M.P.H., National Center for Health Statistics;

Keeshawna S. Brooks, M.A.; Kari L. Nysse-Carris, Ph.D.; Benjamin

J. Skalland, M.S.; Edward T. Sipulski; and Daniel M. Costanzo,

National Opinion Research Center (NORC) at the University of

Chicago

Introduction

This report provides detailed

information on a unique survey, the

2007 Survey of Adult Transition and

Health (SATH), designed as a national

follow-back study to the 2001 National

Survey of Children with Special Health

Care Needs (NS-CSHCN). Both surveys

were sponsored by the Maternal and

Child Health Bureau (MCHB) of the

Health Resources and Services

Administration and conducted by the

State and Local Area Integrated

Telephone Survey (SLAITS) program of

the Centers for Disease Control and

Prevention (CDC), National Center for

Health Statistics (NCHS). The 2001

survey produced comparable national

and state prevalence estimates of

children with special health care needs

(CSHCN), assessed their care in

community-based service systems, and

provided baseline estimates to monitor

progress to implement this care through

six core outcomes (1). Questions in the

2001 survey were asked of the

CSHCN’s parent or guardian who knew

the most about the child’s health and

health care. Detailed methodological

information on the 2001 survey can be

found elsewhere (2).

SATH collected current health status

information directly from young adults

aged 19 to 23 years who were the

subject of the detailed 2001 NS-CSCHN

interview (i.e., CSHCN who lived in

English-speaking households when they

were aged 14 to 17 in 2001). With this

follow-back design, SATH attempted to

address four content and survey methods

objectives:

1.	 Assess the impact of a medical

home and receipt of health-related

transition services in adolescence

(time one) on selected adult health

and well-being outcomes (time two).

2.	 Provide new national data,

heretofore unavailable, linked to the

2001 survey.

3.	 Generate information on unique

respondent locating challenges.

4.	 Test the feasibility of using similar

locating strategies in future surveys.

These data provide a rare

opportunity to examine a critical but

poorly monitored experience: that of

adolescents and young adults with

special health care needs as they switch,

or transition, from their pediatric health

care providers to those that only treat

adults. Cases include a range of

condition severity, activity limitations,

and disabilities. These data can also be

used to describe their life satisfaction

and plans for the future.

Organization of Report

The SLAITS program is described,

followed by a definition of CSHCN and

transition services. Information is

provided on the sample design; survey

and instrument development process;

operating procedures; data collection,

storage, and editing; and creation of the

public-use data file (PUF). Reading

Appendix I before downloading the PUF

Page 1
Page 2 [ Series 1, No. 52

and conducting any analyses is

recommended. Appendix I summarizes

survey strengths, limitations, and

appropriate data use, and it explains

significant survey design and data

collection issues that might impact

analysis and interpretability.

State and Local Area

Integrated Telephone

Survey

SATH data were collected by the

SLAITS mechanism. SLAITS surveys,

or modules, use the huge sampling

frame of the CDC’s National

Immunization Survey (NIS) to identify

eligible cases for additional data

collection. Millions of telephone

numbers per year are required to

identify sufficient households with NIS

age-eligible children. Detailed

information on the NIS sample design

and procedures have been published

elsewhere (3–6). The 2001 NS-CSHCN

sample was drawn from the NIS

sampling frame, by data collection

contractor Abt Associates, Inc.; the 2007

SATH was drawn from the 2001

NS-CSHCN, by data collection

contractor National Opinion Research

Center (NORC) at the University of

Chicago. In 2007, NORC redialed

telephone numbers associated with

selected, completed 2001 NS-CSHCN

interviews to obtain current, valid

contact information for the 2001

sampled CSHCN, now a young adult.

With the assistance of the original 2001

parent or guardian respondent, the

young adult was then contacted directly

to invite him or her to participate in the

2007 SATH.

CSHCN and

Transition Services

Who Are CSHCN?

Children with special health care

needs, as defined by MCHB, are those

who have or are at risk of a physical,

developmental, behavioral, or emotional

condition and require health or related

services of a type or amount beyond

that required by children generally (7).

According to the 2005–2006 NSCSHCN, 13.9% of children aged 0 to 17

had special health care needs, which

translates into a cohort of approximately

10.2 million children (8). Among all

households in the United States with

children aged 0 to 17, an estimated

21.8% have at least one resident

CSHCN (8). The prevalence estimates

of CSHCN at the child and household

levels increased from the 2001 to the

2005–2006 surveys.

These children are identified by the

CSHCN screener as experiencing at

least one of five consequences of a

medical condition that has lasted or is

expected to last for at least 12 months:

+	 Use of prescription medications.

+	 Above-average use of health care

services for a child of the same age.

+	 Limits in activities that most

children of the same age can do.

+	 Use of physical, occupational, or

speech therapy.

+	 Having a behavioral, emotional, or

developmental condition that

requires treatment or counseling (9).

A reliable, valid method does not exist

to fully and accurately identify children

‘‘at risk’’ in this definition, although a

conceptual model of children at risk for

special health care needs has been

proposed (10).

Health Care Transition

As adolescents age and become

legal adults, they usually become more

independent of their siblings and parents

and undergo simultaneous transitions in

many areas. Examples of teenage

transitions, or passages, include

adolescents who move out of their

parents’ home to their own living space,

teens who graduate and advance from

high school to college, and youth who

work part or full time outside of their

home.

Health care transition refers

specifically to the change in who

directly provides and monitors the

adolescent’s clinical and ancillary health

care—that is, the switch from

pediatricians and health care providers

(HCP) who treat only children and

adolescents to HCPs who treat only

adults. Although this health care

transition occurs for all adolescents

regardless of their special health care

needs status, SATH focused only on

transition experiences among CSHCN.

The following characteristics describe an

optimal health care transition experience

for CSHCN:

‘‘(it is a) ... dynamic, lifelong

process that seeks to meet their

individual needs as they move from

childhood to adulthood. The goal is

to maximize lifelong functioning and

potential through the provision of

high-quality, developmentally

appropriate health care services

that continue uninterrupted as the

individual moves from adolescence

to adulthood. It is patient centered,

and its cornerstones are flexibility,

responsiveness, continuity,

comprehensiveness, and

coordination’’ (11).

The conceptualization and

measurement of receipt of transition

services for CSHCN have evolved and

improved over the past decade, with

reliable national and state transition

measures available only since November

2007 when the 2005–2006 NS-CSHCN

data were released. Data on this topic

from the 2001 NS-CSHCN are not

comparable with 2005–2006 data. In the

2001 survey, transition questions were

added to the instrument approximately

halfway through data collection for

children aged 13 to 17. In 2001, only

5.8% of CSHCN received the services

necessary to make appropriate

transitions to adult health care, work,

and independence (12). In 2005–2006,

the target age range was increased

slightly to ages 12 to 17, and all

transition questions were asked from the

start of data collection. In 2005–2006,

just over 41% of CSHCN received

appropriate transition services (41.2%)

(8). Although these outcomes are not

directly comparable across survey years,

it appears that some improvement has

occurred in receipt of transition services

nationally over time. At the state level

in 2005–2006, the prevalence of

CSHCN who received these services

ranged from 24.0% in the District of

Columbia to 54.4% in Missouri (13).
Although SATH data cannot be

used to determine prevalence, they can

be used to examine detailed

characteristics of the transition

experiences of young adults with special

health care needs. A number of positive

attitudes and practices seem to facilitate

a successful transition, and some of

these were assessed in SATH. For

example, the Association for Retarded

Citizens’ (ARC) Self-Determination

Scale was adapted (with permission) to

assess empowerment, goal direction, and

self-regulation of autonomous behaviors

(14).

In contrast to health care transition,

the term ‘‘health care transfer’’ refers to

a specific event, or one piece of the

complex, multiyear health care transition

process (15). Generally, transition occurs

in stages that are consistent with and

dependent upon the child’s evolving

maturity level and progressive

chronological age. During this process,

youth should be encouraged to focus on

their future, examine their values, and

grow increasingly independent.

Adolescents should be or become aware

of their attitudes and skills (such as

self-confidence, self-esteem, selfdetermination, and self-management) to

ensure adequate problem-solving and

decision-making skills.

Significance of Transition

Services

Transition services have become

more important over the past decades

because many severely impacted

children now survive their childhood

health problems or complications. Many

of these youth can expect to live longer

due to advances in drugs, medical and

surgical treatments, prevention, and

improvements in primary care

(16–18). In the past, severely affected

children may not have survived long

enough to begin the transition to adult

health care. Papers on transition-related

topics issued by many leading medical

groups such as the Society of

Adolescent Medicine (19), the American

Academy of Pediatrics (18,20), and a

joint consensus statement issued by the

American Academy of Pediatrics,

American Academy of Family

Physicians, and the American College of

Physicians—American Society of

Internal Medicine (11), are evidence of

the importance of this topic.

Sample Design

This multimode follow-back survey

used a purposive sample of cases

consisting of completed 2001

NS-CSHCN interviews, a specified age

range, and residence in English-speaking

households as of 2001. In contrast, the

2001 survey used a complex,

cross-sectional survey design with

clustering and stratification and a

probability sample (2). The 2007 SATH

was not designed to necessarily provide

representative national or state

prevalence estimates, but instead was

focused on generating descriptive data

to facilitate comparison of outcomes

between groups.

Target Age Group

SATH target subjects (N=10,933)

were 14- to 17-year-old CSHCN who

lived in English-speaking households as

identified in the 2001 NS-CSHCN

detailed interview. This group was

selected because in 2007, they would be

legal adults capable of giving informed

consent for their own interview and

health care. Information collected in

2001 for some of these cases included

whether the youth had received

transition services or had a medical

home in adolescence. These transition

questions were added to the 2001 survey

more than halfway through the data

collection period and were therefore not

asked of respondents who had

completed the survey prior to that point

(n=6,476 cases). Of the initial 2001

target cases, 4,457 received the

transition questions in 2001. Attempts

were made to contact the youth in both

groups, totaling 10,933 cases, to

participate in SATH. The SATH PUF

contains 1,052 completed interviews

with youth who did not receive the 2001

transition questions.

Series 1, No. 52 [ Page 3

Imperative and Standard

Cases

For SATH, transition services were

defined as the parent’s reporting in 2001

that the child’s health care providers

discussed his or her changing health

care needs, helped develop a plan to

address these changing needs, and

discussed the need for him or her to

transition to an adult health care

provider. If a CSHCN reportedly

received all three of these transition

services in 2001, the SATH case was

defined as an ‘‘imperative’’ case, subject

to a more extensive locating protocol to

increase the number of completed

interviews. Cases that did not receive all

three transition services were defined as

‘‘standard’’ cases. Standard classification

included all 2001 cases that did not

receive the transition questions because

the youth’s 2001 interview was

completed prior to this addition. The

dichotomy between standard and

imperative cases reflected the project’s

budgetary constraints. Although a broad

definition of transition services can

include a vocational education

component, it was not included in this

definition because the 2001 interview

data for the vocational education

question had little to no variability, and

these data were not collected for the

entire 2001 data collection period.

Table A examines the maximum

possible subgroup sample sizes by

transition service received for eligible

SATH cases. Over 650 cases were

identified as imperative (n=674), and the

remaining 10,259 were defined as

standard cases.

The difference in the assumed

number of located imperative and

standard cases reflects the more

extensive locating protocol applied to

imperative cases; the locating protocol is

detailed in Appendix II. Because the

2001 NS-CSHCN survey was not

originally designed to support a

follow-back survey, locating cases was

challenging. No current information was

available to locate the 2001 NS-CSHCN

respondents, and the only information

initially available was the randomly

generated, sampled telephone number

dialed in 2001.
Page 4 [ Series 1, No. 52

Proxy Interviews

Proxy interviews were allowed to

accommodate young adults who were

unable to complete the SATH interview

on their own because of physical,

cognitive, speech, or hearing difficulties.

Interviewers asked the person who made

the majority of the decisions about the

young adult’s health care to verify that

the sampled person was unable to

participate, and then asked him or her to

serve as a proxy respondent for the

SATH interview. Proxy respondents

were told to answer the questions from

the point of view of the young adult and

were read the consent statement. Proxy

respondents completed 113 SATH

interviews.

Questionnaire

Development

A panel of federal experts from

MCHB and CDC and other health

policy experts met to consider content

domains for the SATH questionnaire.

Topic domains were selected by their

health policy relevance for the target

population and include demographics,

health and functional status, medical

home status, transition services (when

received) related to health and school,

health insurance coverage, and

community-based services. Additionally,

questions were included that assessed

levels of self-determination, satisfaction,

and support.

When possible, items from existing

related surveys were adapted or included

to maximize comparability and

minimize the need for extensive

pretesting. The following surveys and

measures were reviewed during

questionnaire development:

+	 ARC Self-Determination Scale (14)

+	 National Health Interview Survey

(22)

+	 Special Education Elementary

Longitudinal Study (SEELS) (23)

+	 National Longitudinal Study of

Adolescent Health (AddHealth) (24)

+	 Healthy and Ready to Work

(HRTW) (25)

+	 Survey of Income and Program

Participation (SIPP) (26)

+	 National Longitudinal Transition

Study (NLTS–2) (27)

+	 Plan to Achieve Self-Support

(PASS) (28)

+	 National Survey of Supplemental

Security Income Children and

Families (29)

+	 ILR School Employment and

Disability Institute’s Transition

Quality Indicators (30)

+	 National Longitudinal Survey of

Youth (NLSY) (31)

+	 International Health Policy Survey

of Adults with Health Problems (32)

+	 National Education Longitudinal

Study (NELS) (33)

+	 National Survey of Children’s

Health (NSCH) (34)

+	 National Survey of Children with

Special Health Care Needs (2)

The final SATH data collection

instrument is described in Appendix III.

SATH screener

The SATH screener was divided

into four parts to guide introductory

procedures to locate and contact the

2001 NS-CSHCN respondents and 2007

eligible SATH participants; the

sequential parts are described in

Table B. If the 2001 respondent could

be located, interviewers asked if he or

she knew the current location of the

2007 eligible SATH respondent. If the

youth still lived with the 2001

respondent, the interviewer asked to

speak to the youth directly; if not,

interviewers attempted to collect

updated contact information for the

eligible SATH respondent (e.g., name,

address, telephone number, and e-mail

address).

When interviewers or locators

contacted and spoke to the 2001

respondent, they obtained implicit

permission to link the 2001 NS-CSHCN

data to the 2007 SATH interview data,

per NCHS Research Ethics Review

Board requirements. If the 2001

respondent provided updated contact

information for the target of the 2007

SATH interview or allowed the

interviewer to talk directly to the

resident youth, this was considered

implicit permission to link the 2001 and

2007 survey data.

Content of Detailed SATH

Interview

Table C summarizes key constructs

and subdomains included in the SATH

instrument, in addition to the SATH

screener.

At interview completion,

respondents were thanked for their

participation, asked whether the

interview was conducted using a cellular

or mobile telephone, and provided a

valid mailing address to receive their

monetary remuneration.

Computer-assisted

Telephone Interviewing

SATH used multiple data collection

modes to address the perceived needs

and preferences of its highly mobile,

young target population. Data collection

Table A. Maximum subgroup sample sizes of respondents aged 14–17 years, by transition

services received: 2001 NS-CSHCN completed cases, 2007 SATH

2001

Subgroup sample size

All children aged 14–17 from English-speaking households ...... 10,933

Children aged 14–17 who received transition services questions1. . . 4,457

Talked about changing needs ....................... 2,311

Planned for changing needs ........................ 1,326

Spoke about adult doctor .......................... 962

Received none of these transition services ............... 2,054

Received some but not all transition services .............. 1,637

Received all of these transition services–imperative cases...... 674

1

Added to the survey more than halfway through the data collection period; not asked of respondents who completed the survey

prior to that point.

NOTES: NS-CSHCN is National Survey of Children with Special Health Care Needs. SATH is Survey of Adult Transition and

Health. Subgroup sample sizes exclude vocational education from the transition definition.
Series 1, No. 52 [ Page 5

for telephone cases (either household

landline or cellular telephone) was

conducted with a computer-assisted

telephone interviewing (CATI) system.

Once initial programming of the CATI

system instrument was completed, it

underwent rigorous testing to ensure it

functioned correctly. CATI software

presented individual questionnaire items

on separate screens. Skip logic

commands were embedded appropriately

to ensure correct questions were asked

based on preloaded information or

previous responses. Interviewers entered

responses directly into the computer in

real time. The software determined

whether each response was valid (e.g.,

within an allowable range and consistent

when checked against other data)

according to pre-established parameters.

This technology reduced the time

required to transfer, process, and release

data, and promoted high data quality

and accuracy. Data were also collected

over the Internet. The CATI and Internet

introductions and instrument can be

found in Appendix III. Contrary to

expectations, the landline telephone was

the preferred SATH interview

completion mode: 67.2% of respondents

completed the interview via a landline

telephone, 32.2% completed the

interview via a cellular phone, and less

than 1% completed the interview over

the Internet.

All modes of data collection—CATI

(landline and cellular telephone) and

Internet—used identical instruments,

questionnaire sections, question

wording, and order. The CATI

instrument was administered by the

interviewer, whereas the Internet

questionnaire was self-administered. The

CATI and Internet questionnaires resided

in the same production environment and

accessed a single sample file, and all

survey data regardless of mode were

saved to a single database. System

architecture did not allow interviewers

and respondents to simultaneously

access the CATI and Internet

questionnaires for a particular case,

which eliminated the potential for one

mode to override the other. The screener

portion was accessible only through the

CATI instrument to ensure that Internet

respondents were not able to access it.

All screening was conducted by

telephone interviewers; the Internet was

used only to collect SATH questionnaire

data.

Internet Questionnaire

The Internet questionnaire option

provided SATH respondents a secure,

user-friendly interface and integrated

several Web questionnaire design

principles advocated by Dillman (35).

Specifically, the welcome screen was

motivational, emphasized the ease of

responding, and instructed respondents

in how to proceed to the next page. An

on-screen graphic conveyed the

interview’s progress to discourage

respondents from exiting the survey

Table B. Parts of survey screener component: 2007 SATH

Screener

component Outcome Conclusion

1 ................ 2001 R no longer at dialed number	 Updated contact information for 2001 R was collected from informant, if possible. If 2001 R was

known to be deceased, informant was asked if he or she knew of an intermediary contact person

who might know location and contact information for SATH-eligible person.

2 ................ 2001 R located	 Consent and current contact information obtained to contact 2007 SATH-eligible person directly.

If person still resided in the home, interviewer asked to speak to him or her directly. By giving

current contact information, 2001 R implicitly consents to contacting 2007 eligible person and

including selected 2001 responses on 2007 SATH PUF.

3 ................ 	 Current contact information for 2007 Attempted to contact 2007 SATH-eligible person directly.

eligible case can be collected

4 ................ 	 Current contact information for 2007 If informant knew of intermediary contact person who might know location of SATH-eligible

eligible case cannot be collected person, his or her name, address, and telephone number were collected.

NOTES: SATH is Survey of Adult Transition and Health. R is respondent. PUF is public-use file.

Table C. Content of survey detailed interview: 2007 SATH

Screener

CATI and Web introduction, informed consent

Section 1: Health and functional status

Subdomain 1: General health status

Subdomain 2: Activity limitations—daily living

Subdomain 3: Activity limitations—work

Subdomain 4: Activity limitations—school

Subdomain 5: Activity limitations—taking care of house or family

Section 2: Medical home

Subdomain 1: Usual place for care

Subdomain 2: Continuous screening

Subdomain 3: Foregone or delayed care

Subdomain 4: Care coordination

Subdomain 5: Person-centered care

Section 3: Transition services related to health

Section 4: Community-based services

Section 5: Health insurance coverage

Section 6: Transition services related to school

Section 7: Self-determination

Section 8: Satisfaction and support

Section 9: Demographics

Subdomain 1: Marital status and living arrangement

Subdomain 2: Personal earnings and program participation

CATI and Web questionnaire exit

Callback and answering machine scripts

NOTES: SATH is Survey of Adult Transition and Health. CATI is computer-assisted telephone interviewing.
Page 6 [ Series 1, No. 52

when only a few questions remained.

Individual questionnaire items appeared

on separate screens, and each item was

displayed using a consistent format to

enhance readability. Response and

navigation buttons were appropriately

spaced on the screen to reduce user

error. Internet respondents were allowed

to return to a previously answered

question or resume their session at a

later time. Finally, each screen contained

an embedded link that made it easy for

respondents to submit requests for

technical support via e-mail.

To address security concerns, the

Internet questionnaire resided on a

secure server behind the network

firewall. Access for Internet respondents

was restricted through the use of

uniquely assigned passwords provided

via e-mail or, upon request, via

hard-copy letter.

Pretest

A pretest was not conducted due to

the condensed locating and data

collection schedule.

Interviewer Training

All SATH contact attempts and

interviews originated from the NORC

telephone center in Chicago. Interviewer

recruitment began in May 2007, 1

month prior to the scheduled data

collection start date. Interviewer training

was conducted in two sessions over 3

days in June 2007 with a total of 43

attendees, all of whom were certified as

SATH interviewers at the end of the

training. One cohort of 21 interviewers

was trained during June 4–5, 2007, and

a second cohort of 22 more experienced

interviewers attended 1 day of training

on June 6, 2007.

CATI Training

CATI training emphasized two main

activities that interviewers would

perform: screen to identify eligible

respondents and conduct the SATH

interview. All interviewers completed a

5-hour, project-specific CATI training

and certification process before dialing

potential SATH respondents. These

sessions emphasized and reinforced the

importance of identifying the correct

eligible SATH respondents. Trainers

pointed out various elements in the

SATH introduction used to verify that

the contacted respondent was the 2001

NS-CSHCN respondent or the intended

SATH respondent. Verification elements

included the 2001 NS-CSHCN

respondent’s relationship to the SATH

respondent (e.g., mother, father, or other

guardian), and the SATH respondent’s

date of birth (if available), gender, and

age. Trainers also conveyed the overall

survey purpose and sponsor, a

description of the target population, and

the potential need to locate a portion of

SATH respondents outside of the CATI

screener. Interviewers were instructed

not to discuss the 2001 survey or

CSHCN until the correct respondent’s

identity was verified.

Trainers reviewed key concepts in

each section of the SATH instrument, in

the detail necessary to provide

interviewers with a well-rounded

knowledge of questionnaire content.

Trainers then led mock interviews and

alternated playing the role of the 2001

NS-CSHCN and 2007 SATH

respondents to familiarize interviewers

with the entire questionnaire and

interview process. Mock interviews also

included refusal aversion scenarios

requiring trainees to practice skills in

gaining cooperation and to demonstrate

project knowledge. These skills

improved their abilities and built their

confidence to adeptly answer frequently

asked questions to avert item-level,

unit-level, and global refusals. At the

end of the training sessions, they

participated in review exercises

structured as an interactive, engaging

game that required each person to

access newly acquired project and

protocol knowledge. Interviewers then

were administered a written evaluation

that tested project knowledge. Finally,

interviewers completed a final mock

interview to demonstrate their ability to

successfully conduct SATH screeners

and interviews.

All certified interviewers had

dialing experience before they contacted

any eligible SATH respondents (e.g., all

interviewers were staffed on other

telephone surveys before attempting

SATH data collection). This ensured that

all SATH interviewers had prior

telephone survey experience and were

comfortable with the data collection

software, instrument, and interviewing

process in general.

Locating Training

Approximately 2 weeks after

telephone interviewing began, all

interviewers received a separate, 4-hour

project-specific locating training to

prepare them to use information to

locate respondents; this training is

detailed in Appendix II. CATI and

locating trainings were held separately

to allow interviewers to become

comfortable with the screener and

instrument. As interviewers gained

experience working through the SATH

screener and interview, they developed

an understanding of the importance of

the locating activities and had

uninterrupted time to improve their

strategies and locating skills. SATH

interviewers were also trained as

locators because they could potentially

encounter situations where locating

activities immediately led to the

opportunity to conduct a SATH

interview. Locating activities started

with the 2001 telephone number.

Interviews via

Respondent’s Cellular

Telephone

Given the proliferation of cellular

telephones, particularly within the age

range of the targeted respondents, SATH

interviewers were prepared to administer

the survey via cellular telephone to

maximize convenience. During the

training, interviewers were informed that

a cellular telephone number provided by

the 2001 NS-CSHCN respondent to

reach the target young adult in the

eligible SATH case would be dialed

manually, to ensure compliance with the

restrictions of the Telephone Consumer

Protection Act of 1991. Once SATH

respondents confirmed the call was

taking place on a cellular telephone,

interviewers were instructed to mention

that an additional $5 would be provided
Series 1, No. 52 [ Page 7

for the respondent’s cellular air time and

applicable long-distance charges. Except

to manually dial cellular telephone

numbers, these interviews followed

identical data collection protocols

implemented for landline telephones.

Security and

Confidentiality

All staff assigned to SATH signed

the NCHS Nondisclosure Affidavit,

which committed them to perform

project work in accordance with the

authority and restrictions of Section

308(d) of the Public Health Service Act.

The affidavit acknowledged the

employees’ understanding of the

consequences of unauthorized disclosure

under Section 513 of the Confidentiality

Information Protection and Statistical

Efficiency Act of 2002 (CIPSEA) and

the Privacy Act of 1974, 5 U.S.C.

Section 552a(i)(1). All employees and

contractors, permanent or intermittent,

were also required to watch a video

produced by NCHS on ‘‘Confidentiality

Requirements for NCHS Contractors’’

prior to being given access to data

protected under these authorities.

Data Collection

Modular recruitment, consent, and

data collection procedures are

highlighted in this section.

Advance Letter

Advance letters were not sent

because case telephone numbers were

not recently address-matched to a

current, valid street address in 2007.

SATH Screening, Locating,

and Interviewing Processes

The text Figure depicts the general

process flow and modular nature of the

SATH locating and interviewing tasks.

Initial contact attempt

SATH data collection began June

12, 2007, and ended August 26, 2007.

Telephone numbers from 2001 were

loaded in the CATI system, and

interviewers dialed through the sample

to determine whether the 2001 telephone

number still reached the 2001

NS-CSHCN respondent. This was an

efficient and effective way to determine

whether respondents could be easily

located and contacted at the last known

telephone number or if more extensive

locating efforts would be needed.

Only English-speaking households

from 2001 were contacted for SATH

due to cost constraints. When

interviewers contacted households where

no household member spoke English,

the case was sent to locating.

Contacting 2001 respondent

The 2001 respondent’s relationship

to the 2007 eligible SATH respondent

was preloaded into the CATI system and

questionnaire so that interviewers could

specifically ask to speak with the young

adult’s mother, father, grandparent, or

other guardian who responded in 2001.

If the 2001 respondent indicated the

youth still lived in the home, the

interviewer asked to speak to him or her

directly. If the youth no longer resided

with the 2001 respondent, interviewers

collected updated contact information

(e.g., name, address, telephone number,

and e-mail address).

Identifying and contacting 2007

respondent

If available, the SATH CATI

instrument contained three preloaded

pieces of information to assist

interviewers and the 2001 respondent to

identify the correct 2007 eligible SATH

case: the 2007 eligible respondent’s

gender, age at the time of the 2001

NS-CSHCN interview, and date of birth.

The CATI system calculated the young

adult’s current age based on the amount

of time that had passed since the 2001

NS-CSHCN interview and the young

adult’s date of birth. Data were collected

for the 2001 survey from October 2000

to April 2002 (2).

If the 2001 respondent indicated

that two or more persons with identical

gender and age resided in the household,

the interviewer provided the date of

birth for the intended SATH respondent

to identify the correct young adult. If

the date of birth did not uniquely

identify the SATH respondent, the

interviewer informed the 2001

respondent that someone would

recontact them with additional

information that might indicate which

young adult was eligible for SATH. The

case was then referred to project staff

who accessed a file provided by NCHS

to help differentiate same-aged persons.

This file contained information from the

2001 NS-CSHCN—such as the specific

special health care needs of children in

the household—that could be used to

identify which young adult was eligible

for SATH. Project staff accessed this file

for 16 cases during data collection and

identified the intended respondent in 10

cases. In the remaining six cases, no

information uniquely identified the

intended SATH respondent.

To further verify that the correct

young adult had been identified, the

potential SATH respondent was asked to

confirm his or her date of birth. The

recorded date of birth was confirmed for

1,757 cases. For the remaining 159

cases, the data of birth either was

incorrect or unavailable. These

respondents were given an opportunity

to provide the correct date of birth

before they began the interview.

Endorsement and Internet

Offer Letters

During SATH data collection, 57

respondents requested an endorsement

letter (Appendix IV) that provided

supplemental information about the

SATH survey, such as the purpose, an

assurance of confidentiality, and

points-of-contact regarding respondent

rights. The endorsement letter was

available in two versions: one for

gatekeepers, parents, or informants

verified the survey’s legitimacy,

described the study in general terms,

and asked the recipients for their

cooperation. The second version,

directed to 2007 respondents,

specifically stated that someone in their

household had participated in an earlier

survey on their behalf, and that CDC

wished to interview them. The letter

mentioned the interview would take
Page 8 [ Series 1, No. 52

about 15 minutes, and the respondent

would receive a $20 token of

appreciation.

The Internet offer letter (Appendix

V) was sent upon request if the young

adult sent an e-mail using an address

link on the SLAITS SATH-specific

website during data collection, or if he

or she expressed a desire to complete

the interview by Internet when called by

an interviewer. This letter provided the

Internet questionnaire website address

and a unique password to access the

questionnaire. Internet offer letters were

sent to 73 respondents. The letters

reminded respondents that they would

receive a $20 token of appreciation and

provided the project’s toll-free telephone

number to answer questions or complete

the survey over the telephone.

Toll-free Telephone

Number

A toll-free telephone number

attended by NORC was provided in

SATH answering machine messages,

exit scripts, and the Internet survey

introduction, and by SATH interviewers

at the respondents’ request. Respondents

could call this number to gather

additional information about the project

or complete the interview if the 2001

respondent previously provided consent

in the SATH screener. Respondents

associated with 155 eligible SATH cases

placed 289 calls to the toll-free number

during the production period. Of the 155

eligible cases, 121 respondents

completed the SATH interview.

Informed Consent and

Assurance of

Confidentiality

Participation in surveys conducted

by NCHS is voluntary, and information

collected on individuals is confidential.

For SATH, assurance of confidentiality

was provided to potential respondents as

part of the informed consent procedures.

In the CATI system, interviewers

acknowledged that they read the

following script to potential respondents:

‘‘Before we continue, I’d like you to

know that this research is

authorized by the U.S. Public

Health Service Act so your answers

will be kept strictly private. Your

participation is voluntary. You may

choose not to answer any question

you don’t want to answer or stop at

any time without penalty.’’

If a respondent requested a description

of the authorizing legislation, the

interviewer read the following:

‘‘The Public Health Service Act is

Volume 42 of the U.S. Code, Section

242k. The collection of information

in this survey is authorized by

Section 306 of this act. The

confidentiality of your responses is

assured by Section 308d of this

act.’’

Section 308d of the Public Health

Service Act (42 U.S.C. 242m) states:

No information, if an establishment

or person supplying the information

or described in it is identifiable,

obtained in the course of activities

undertaken or supported under

section ... 306 ... may be used for

any purpose other than the purpose

for which it was supplied unless

such establishment or person has

consented (as determined under

regulations of the Secretary) to its

use for such other purpose and in

the case of information obtained in

the course of health statistical or

epidemiological activities under

section ... 306, such information

may not be published or released in

other form if the particular

establishment or person supplying

the information or described in it is

identifiable unless such

establishment or person has

consented (as determined under

regulations of the Secretary) to its

publication or release in other form.

Strict procedures were followed to

prevent disclosure of confidential data in

survey operations and data

dissemination.

INITIAL CONTACT 

Call 2001 NS-CSHCN 

phone number 

LOCATE 2001 R 

Screener Parts I and IV and 

CM-Locating 

OBTAIN 2001 R CONSENT AND 

IDENTIFY YOUNG ADULT 

Screener Parts II and III 

OBTAIN YOUNG ADULT’S 

CONSENT 

SATH introduction 

INTERVIEW YOUNG ADULT 

Administer SATH survey and 

exit—mail incentive to 2007 R 

LOCATE YOUNG ADULT 

Screener Parts III and IV 

NOTES: NS-CSHCN is the 2001 National Survey of Children with Special Health Care Needs. R is respondent. CM-Locating is a proprietary computer program used to manage contact 

information, leads, and locating information for cases. SATH is the 2007 Survey of Adult Transition and Health. 

SOURCE: CDC/NCHS, Survey of Adult Transition and Health, 2007. 

Figure. General process flow: 2007 SATH
Series 1, No. 52 [ Page 9

The 2001 respondent’s willingness

to help locate the eligible SATH case

was considered consent to proceed. If

the potential respondent could be

located using updated contact

information, or if he or she still lived in

the home, the following consent script

was read upon speaking directly to the

eligible SATH respondent:

‘‘Before we continue, I’d like you to

know that taking part in this

research is voluntary. You may

choose not to answer any question

you do not wish to answer, or stop

at any time without penalty. Your

answers will be used for statistical

purposes, and will be linked to your

parent or guardian from several

years ago. We are required by the

Public Health Service Act to keep

your answers strictly private. I can

give you more information on this

and other federal laws if you wish.

They state that your answers will be

used only for statistical research.

The survey will take about 15

minutes. In appreciation, you will

receive $20. (IF CALLING KNOWN

CELLULAR TELEPHONE

NUMBER: You will also receive an

additional $5 to defer your costs for

doing the interview on your cellular

telephone). In order to review my

work, my supervisor may record

and listen as I ask the questions. I’d

like to continue now unless you

have any questions.’’

A specific description of federal laws

that protect respondent confidentiality

was available to interviewers if

respondents requested additional

information.

Interview and Section

Length

The SATH questionnaire was

approximately 14 minutes in total

length. Dynamic time stamps were

embedded throughout the questionnaire

to measure section and total interview

administration time. Table D provides

the average administration times in

minutes for both areas.

Partially Completed

Interviews

Almost all SATH respondents who

began the interview completed it. A

partially completed interview was

defined as a case in which a respondent

completed question F7Q01 in Section 6

(transition services related to school).

Only 6 of the 1,865 cases included in

the final PUF had a partially completed

interview.

Third Party Present

During Interview

SATH interviewers assured 2001

respondents that information from the

2001 NS-CSHCN would not be

communicated to the young adults.

Likewise, interviewers assured the 2007

respondents that their information would

not be communicated to their parents or

guardians. Even with these assurances,

telephone surveys present a challenge in

that a household member could listen to

the interview by picking up another

landline telephone extension in the

home. During the interviewer debriefing

session, interviewers indicated that on at

least two occasions they suspected that a

parent listened to at least a portion of

the SATH interview. Consequently, a

third-party protocol was established. If

an interviewer suspected a third party

was listening to the interview, the

interviewer asked the SATH respondent

if someone else was on the line. If the

respondent indicated no, or if the parent

left the call at that point, the interview

continued. If the parent insisted on

remaining on the line and the SATH

respondent expressed comfort with this,

the interview continued and the

interviewer completed a case form

indicating that a third party had been on

the line during the interview. After this

protocol was instituted, one case was

subsequently flagged as having a third

party present during the SATH

interview.

Monetary Incentives and

Thank You Letters

SATH respondents who completed

the interview and provided a valid

address at the interview’s conclusion

received a cash incentive of $20

accompanied by a thank-you letter

(Appendix VI). If the respondent

completed the interview via cellular

telephone, an additional $5 in cash was

included. The $5 cellular telephone

reimbursement amount was calculated

using an average of per-minute charges

associated with national cellular

telephone plans at the time of the

interview.

Efforts to Maximize

Response Rates

Numerous approaches were used to

maximize response rates, including:

+	 Using established tested survey

questions as much as possible

during SATH development stages to

minimize possible points of refusal

or ambiguity.

Table D. Length of survey interview, by section: 2007 SATH

Mean length in

Section minutes (SD)

Overall interview length .................................... 14.36 (3.10)

Section 1: Health and functional status ......................... 2.83 (0.81)

Section 2: Medical home .................................. 4.4 (1.71)

Section 3: Transition services related to health .................... 1.07 (0.39)

Section 4: Community-based services .......................... 0.58 (0.41)

Section 5: Health insurance coverage .......................... 1.33 (0.36)

Section 6: Transition services related to school .................... 0.74 (0.28)

Section 7: Self-determination ............................... 0.96 (0.27)

Section 8: Satisfaction and support............................ 0.88 (0.23)

Section 9: Demographics .................................. 1.66 (0.46)

NOTES: SATH is Survey of Adult Transition and Health. SD is standard deviation. Cases were excluded from the timing analysis

on a section-by-section basis for three reasons: the overall interview time was less than zero; a section began and ended on

separate calls, resulting in invalid timings; or an interviewer returned to a previous questionnaire item to check or correct an

answer, resetting the dynamic section timestamp and creating invalid timing for a section.
Page 10 [ Series 1, No. 52

+	 Using monetary incentives and

cellular telephone reimbursement.

+	 Establishing a toll-free number to

allow respondents to participate

immediately, ask questions about the

survey, obtain additional surveyrelated information, or verify survey

legitimacy.

+	 Referring cases to locating staff to

follow up on leads provided by

Accurintt (a locating vendor that

maintains a proprietary data-linking

system to public records).

+	 Managing the sample with flexible

calling schedules and close

monitoring of SATH interviews and

sample dynamics, particularly during

production closedown.

+	 Contacting leads to maximize

chances of locating the intended

SATH respondents.

+	 Using specially trained refusal

converters to target SATH refusals

based on case history.

Interview Completion Rate

Final case disposition classifications

are shown in Appendix VII. Table E

provides the number of completed

interviews and interview completion rate

by sample type. Overall, 1,916

interviews were completed, of which

1,865 are included in the public-use file.

The preferred interview completion

mode was the landline telephone: 1,288

respondents completed the interview via

landline telephone (67.2%), 616

completed via cellular telephone

(32.2%), and 12 completed via the

Internet (less than 1%).

The SATH interview completion

rate was 17.5% using American

Association for Public Opinion Research

(AAPOR) standards (21), calculated as

the total number of sufficient partial and

fully complete interviews divided by the

total eligible sample. The rate is

primarily driven by the inability to

contact original households and is not

due to a high refusal rate. Of the

original 2001 parents or guardians, we

were unable to contact 7,409 (68%). Of

the young adults we were able to

contact, almost all of them cooperated;

the AAPOR cooperation rate was just

over 98% (N = 1,916).

Quality Control

Project staff continually monitored

SATH interviewers, locators, and data

consistency. In addition, an interviewer

debriefing session was held 1 week after

data collection began to solicit

comments and concerns from

interviewers.

Interviewing

Telephone center supervisors were

available to interviewing staff at all

times to resolve any questions or

concerns about a case. Supervisors

regularly observed the data collection

process to monitor interviewers

informally. In addition, supervisory staff

used remote telephone and computermonitoring technology to evaluate

whether interviewers performed

according to project specifications. This

formal monitoring was conducted to

ensure that interviewers read

introductory materials properly, adhered

to screening and locating procedures,

followed questionnaire item wording

and sequence, answered respondent

questions properly, and probed any

vague responses properly. Computer

monitoring also allowed supervisors to

ascertain whether interviewers entered

answers accurately into the CATI

system.

Supervisory staff monitored 10% of

all SATH interviewing calls. To avoid

bias, the CATI monitoring system

automatically selected which

interviewers to monitor. The highest

priority for selection was assigned to

newly trained interviewers, those with

the fewest monitoring sessions, or those

with the weakest performance reviews.

Experienced interviewers were

prioritized based upon the length of time

since their last monitoring session and

recent monitoring scores. Each

interviewer was typically monitored at

least once a week; however, some

interviewers were monitored more often.

In addition, telephone interviews were

recorded with permission from the

respondents. These recordings were

valuable tools for providing interviewers

feedback on performance.

Cases completed via the Internet

questionnaire were not monitored, given

the self-administered nature of the

mode. A case could not be

simultaneously accessed via Internet and

CATI, which eliminated concerns that

one data collection mode might

overwrite another.

Interviewer Debriefing

After 1 week of data collection, an

interviewer debriefing session was

conducted with three SATH interviewers

to solicit interviewer feedback on the

screening and interviewing process.

Overall, interviewers were very

enthusiastic about the study. They

reported that the CATI instrument

Table E. Interview completion rates, by sample type: 2007 SATH

Imperative

cases

Standard

cases1 Overall

Sample size (n).............................

Targeted number of completed interviews.............

Interview completion rate .......................

674

. . .

21.1%

10,259

. . .

17.3%

10,933

1,845

17.5%

...Category not applicable.
 

1

Transition service questions were added to the survey more than halfway through the data collection period and were not asked of respondents who completed the survey prior to that point. Cases
 

without 2001 transition information were classified as standard cases.
 

NOTE: SATH is Survey of Adult Transition and Health.
 
Series 1, No. 52 [ Page 11

functioned properly, 2007 respondents

were eager to participate in the survey,

and respondents did not have difficulty

understanding the survey questions.

During the debriefing, interviewers

raised two concerns and asked for

additional job aids to address two

separate issues. First, interviewers

commented that some parents refused to

place the 2007 respondent on the

telephone, stating concerns over what

type of information from the 2001

NS-CSHCN would be divulged to the

young adult. An additional frequently

asked question and answer was drafted

to address this concern:

Question: ‘‘How do I know that you

will not divulge information from

the 2001 survey to my son or

daughter?’’

Answer: ‘‘We appreciate your

participation in the 2001 survey.

Federal laws prohibit us from

revealing your answers to anyone,

including your son or daughter. If

you have questions about your

rights as a study participant, you

may call 1–800–223–8118, toll-free,

and leave a message asking to

speak to the Chairperson of the

Ethics Review Board.’’

Interviewers revealed that on at least

two occasions, a parent remained on the

line to listen to the young adult’s

interview. Because it was desirable to

conduct the telephone interview in a

setting as private and confidential as

possible, the following protocol was

distributed to interviewers to help them

handle instances when they suspected

that a third party was on the call:

Situation: If a parent (or other

household member) stays on the

line during the interview with the

2007 respondent:

Response: ‘‘Is someone on another

telephone?’’

If the R says ‘‘Yes,’’ say ‘‘According

to our confidentiality standards, it

would be ideal for us to conduct

this interview with only you (i.e.,

the 2007 respondent) on the

telephone line. Is that an option?’’

If [the] parent hangs up, continue

the interview. If the parent insists

on staying on the line, continue the

interview and complete a form to

indicate the parent’s presence on

the call.

If the R says, ‘‘No’’ (and it is clear

that the parent is still on the

telephone), say, ‘‘That’s ideal.

According to our confidentiality

standards, it’s important that we

conduct this interview with just you

on the telephone line.’’ Continue

with the interview and complete a

form to indicate the parent’s

presence on the call.

In a number of cases, the parent

continued to stay on the telephone line

during the interview because he or she

was trying to assist the interviewer. For

example, youth who experienced

moderate or severe functional limitations

may have had difficulty communicating

their answers over the telephone in a

way the interviewer could understand.

During quality control monitoring, this

situation occurred a few times and it

was noted (at least for these cases) that

the parent or guardian did not in any

way attempt to influence or change the

answer of the youth.

These responses to interviewers’

concerns were distributed to all

interviewers after the debriefing session.

Supervisors reviewed the new question

and answer as well as the protocol for

handling a third party with all

interviewers to ensure that they were

aware of and understood the new

information.

Data Collection

The CATI and Internet systems

were programmed to ensure complete

and accurate data collection using

automated data checking techniques

such as response-value range checks and

consistency edits during the interview

process. These features enabled

interviewers to obtain needed

clarifications while still on the telephone

with the respondent. If an Internet

respondent failed to answer a question,

the Internet program alerted the

respondent that a question was not

answered and prompted them to enter a

response. Throughout data collection,

project staff reviewed interview data for

consistency between fields, appropriate

response-value ranges, skip logic

patterns, and missing information.

Weighting and

Estimation Procedures

Sampling Weight

The 2007 SATH sampling weight

for each case was derived from the

original 2001 NS-CSHCN sampling

weights. The SATH weight was then

adjusted for non-response to the SATH

interview with demographic information

from the 2001 NS-CSHCN. However, a

detailed analysis of SATH non-response

bias has not been completed. Young

adults from households that did not

move between 2001 and 2007 are likely

overrepresented in the data set, and

these young adults may differ in

important ways from young adults who

live in households that did move

between 2001 and 2007. Because of the

sample design, response rate, and the

possibility of nonresponse bias, analysts

may wish to consider the SATH sample

as a convenience or purposive sample

rather than a random sample. Data from

a purposive sample should not be used

to test hypotheses about the target

population.

Weighting Objective and

Process

The SATH target population was

CSHCN in the United States aged

14–17 in 2001 who lived in Englishspeaking households, with a completed

NS-CSHCN interview (n=10,933). The

SATH weighting process was designed

so that the 1,865 completed SATH cases

on the PUF should represent this target

population when an adjusted version of

the 2001 weight is applied. Of the 1,916

completed cases, 1,865 are included on

the SATH PUF.

The SATH weighting plan was

developed independently within each of

three weighting domains:

Domain 1—The CSHCN received

all transition services as of the 2001

interview.
Page 12 [ Series 1, No. 52

Domain 2—The CSHCN did not

receive transition services, but had a

medical home in 2001.

Domain 3—The CSHCN did not

receive transition services or care in

a medical home in 2001.

These weighting domains were

developed because separate inference

was desired in each domain. It was also

desired to divide Domain 1 into

‘‘medical home’’ versus ‘‘not medical

home,’’ but too few interviews were

completed in Domain 1 to make this

division possible. Within each domain,

the SATH weighting procedure was

conducted as follows:

+	 Adjust the 2001 NS-CSHCN

interview weight for nonresponse to

the SATH interview.

+	 Truncate the extreme nonresponseadjusted weights.

+	 Adjust, or ‘‘rake,’’ these weights so

that their sum agrees with marginal

control totals from the NS-CSHCN.

+	 Truncate the extreme raked weights.

+	 Repeat raking and truncation steps

until no extreme weights remain and

end on a raking step.

Step 1: Adjust for nonresponse

to SATH interview

The 2001 NS-CSHCN interview

weights for SATH respondents in each

domain were adjusted to account for

nonresponse to the SATH interview.

Within each domain, nonresponse

adjustment cells were formed and

weights for nonrespondents within each

cell were redistributed among the

respondents within the cell. The

nonresponse adjustment cells were

formed using data collected during the

2001 NS-CSHCN interview from 11

variables in the child, household, and

interview files. For each variable, a

logistic regression equation modeled that

variable’s relation to SATH response

propensity. Variables found to be

significant at the 0.05 level were then

placed in a logistic regression model

with stepwise selection. Variables

chosen in the stepwise selection were

used to form nonresponse adjustment

cells. These cells were then collapsed

until each contained a minimum number

of SATH respondents per cell, with the

variables least significantly related to

response propensity collapsed first.

Variables chosen by the stepwise model

process are listed by domain:

+	 Domain 1—Presence of a medical

home and poverty status (2,36).

+	 Domain 2—Poverty status, total

persons, and race and ethnicity.

+	 Domain 3—Poverty status, total

adults, race and ethnicity, and

elevated services need.

In Domain 1, the number of adults in

the household was significantly related

to SATH response propensity, but due to

the small number of SATH respondents

with only one adult in the 2001

household, the number of adults could

not be used to form nonresponse

adjustment cells in Domain 1.

Step 2: Truncate extreme

nonresponse-adjusted weights

The nonresponse-adjusted weights

were then truncated, or trimmed, within

each domain to reduce the mean square

error of estimates. If the weight was

greater than the median plus six times

the interquartile range of the weights in

the domain, the weight was set equal to

six times the interquartile range. This

cutoff point was chosen after the impact

of various cutoff points on design

effects and mean square errors were

examined.

Step 3: Adjust (rake) weights to

control totals

Next, the truncated weights from

step 2 were adjusted, or raked, so that

the sum of the weights agreed with

marginal age, sex, and race and

ethnicity control totals for each domain.

The weights for 51 dropped cases were

redistributed by age, sex, and race and

ethnicity. The control totals were formed

by summing the 2001 NS-CSHCN

interview weights for eligible SATH

children by age, sex, and race and

ethnicity categories.

Step 4: Truncate extreme raked

weights

Consistent with step 2, the raked

weights were then truncated in each

domain to the median plus six times the

interquartile range of the weights in the

domain.

Step 5: Repeat raking and

truncation until no extreme

weights remain, and end on

raking step

Truncation and raking steps were

then repeated iteratively within each

domain until no extreme weights

existed. After three rounds, the weights

were adjusted a final time to produce

the final SATH interview weight.

Table F provides summary statistics for

the final SATH PUF person-level weight

(WEIGHT_SATH).

Estimation

Although the SATH PUF contains

one interview weight for each sampled

young adult, analysts may wish to

consider the SATH sample as a

convenience sample rather than a

random or complex sample because of

the sample design, response rate, and

the possibility of nonresponse bias.

Analysts should review the sample sizes

with which they work: Compared with

other SLAITS modules, the SATH

sample size is very small, and the SATH

data file should not be used to calculate

national prevalence estimates. It can be

Table F. Summary statistics for final interview weight: 2007 SATH

Unweighted Minimum Maximum Mean Sum of

sample size weight weight weight weights

United States................ 1,865 18.87 9,784.54 1,290.68 2,407,111.00

NOTE: SATH is Survey of Adult Transition and Health.
Series 1, No. 52 [ Page 13

used to calculate weighted percentages,

proportions, and more to use in

hypothesis generation, but these figures

should not be labeled as nationally

representative prevalence estimates.

Public-use Data File

A SATH PUF in SAS format is

available for free download anytime

with programs to read the file and attach

permanent formats. It contains one

record for each partially or fully

completed SATH interview, and selected

data collected from the 2001 NSCSHCN interview are attached to each

case record in the PUF. The 2001 data

strengthens the analytic use of the

SATH data set, provides comparison

data to track outcomes over time (albeit

from different respondents), and

provides benchmarks to classify certain

subgroups for comparative analysis.

The SATH PUF contains 1,052

completed interviews with youth who

did not receive the 2001 transition

questions.

Edits to Protect

Confidentiality

NCHS takes extraordinary measures

to ensure the identity of survey

respondents, and subjects cannot be

disclosed. No NCHS publicly released

microdata files may contain any

information that would directly or

indirectly lead to the disclosure of any

respondent’s or subject’s identity. The

risk of inadvertent disclosure of

confidential information about individual

respondents is higher with a publicly

released data set that has detailed

geography variables, a detailed and

extensive set of survey observations, or

a sizeable proportion of the total

population of interest. Common

techniques to reduce the risk of

inadvertent disclosure include

coarsening a data set by suppressing

survey variables, collapsing multiple

variables into one, collapsing response

categories for other variables, and

introducing noise in the data.

Some of these measures were

applied to the SATH data file and

selected variables to reduce the risk of

inadvertent disclosure:

+	 SATH PUF does not include the

2001 and 2007 interview dates.

+	 The 2001 NS-CSHCN variables on

the 2007 SATH PUF were taken

directly from the 2001 NS-CSHCN

PUF.

+	 Top- and bottom-coding are

techniques routinely applied to

variables to mitigate a disclosure

risk for extreme values. In SATH

PUF, three variables were top-coded.

The variable F3Q21 was recoded as

F3Q21R (‘‘In the past 12 months,

the number of preventive care

visits’’), F3Q22 was recoded as

F3Q22R (‘‘In the past 12 months,

the number of preventive dental

visits’’), and F10Q21 was recoded

as F10Q21R (‘‘The next question is

about your total income in the past

12 months, including income from

all sources such as wages, salaries,

Social Security, help from relatives,

and so forth. Can you tell me that

amount before taxes?’’). Values for

the variable F3Q21R were

top-coded at 20 or more preventive

care visits; for F3Q22R, at eight or

more preventive dental visits; and

for F10Q21R, at more than

$50,000.

Analysts who wish to work with

unsuppressed data files may apply to the

NCHS Research Data Center (RDC) at

NCHS headquarters in Hyattsville,

Maryland. Data files housed in the RDC

may also be accessed remotely.

Information on fees and procedures is

available from http://www.cdc.gov/rdc.

Other Edits

Very little editing of SATH

interview data was necessary. The CATI

and Internet instruments did not allow

values to be entered that were not

response options to the questions.

Post-interview data editing was required

only when interviewers typed an

incorrect code for ‘‘don’t know’’ or

‘‘refused’’ responses to the income

question (F10Q21) or did not code the

open-ended question (F2Q30A)

correctly.

Question F2Q30 asked respondents

what they were doing most of the time

during the past 12 months, with the

following response options:

1 = WORKING AT A JOB OR

BUSINESS

2 = LOOKING FOR WORK

3 = TAKING CARE OF HOUSE

OR FAMILY

4 = GOING TO SCHOOL

5 = SOMETHING ELSE

If ‘‘something else’’ was chosen, at the

next question (F2Q30A) the respondent

was asked for a description, which the

interviewer recorded verbatim. A review

of responses to F2Q30A found that

often the recorded verbatim response

should have been coded into one of the

existing choices at F2Q30. Moreover,

many of the recorded verbatim

responses were similar in nature.

Therefore, a new variable, F2Q30RR,

was created and set equal to F2Q30 if

F2Q30 was valid, or set equal to the

appropriate F2Q30 code if the F2Q30A

verbatim response could be coded into

an existing F2Q30 response option.

Several new codes were added to

F2Q30RR to accommodate the most

common verbatim responses:

6 = REHABILITATION

7 = DAY PROGRAM

8 = VOLUNTEERING/

MISSIONARY WORK

9 = RECREATION

Missing Data

Although data users often ignore all

missing values, SAS provides a

mechanism for analysts who wish to

distinguish between different kinds of

missing data. The following missing

value codes are used in SATH PUF:

(.L) Legitimate skip: The variable is

missing due to valid questionnaire

paths based on a previous answer to

a root question.

(.M) Missing in error: The variable

is missing due to interviewer or

system error. In cases of interviewer

error, the interviewer may have
Page 14 [ Series 1, No. 52

deleted the data by accident or not

recorded an answer for the question.

In cases of system error, the data

may not have been collected or

saved properly after it was entered

by the interviewer in the CATI

system.

(.P) Partially completed interview:

The variable is missing because the

respondent hung up after he or she

answered question F7Q01 before

completing the full interview.

Derived Variables

Derived variables are created to

facilitate analysis or address

confidentiality concerns. Derived

variables from the 2001 NS-CSHCN

PUF or 2007 SATH data included in the

2007 SATH PUF are listed in Table G.

The 2001 NS-CSHCN Design and

Operations report (2) contains additional

information on 2001 derived or flag

variables included in the 2007 SATH

PUF. For example, the SATH PUF

contains two geographic variables from

the 2001 PUF (STATE and

MSASTATR).

Several derived variables were

created specifically for SATH PUF

(variables MET1, MET2, MET3, MET5,

and MET6) using 2001 data, to assess

the care of CSHCN in community-based

service systems (1) [i.e., did the care the

CSHCN received meet conditions to

achieve five of the MCHB core

outcomes in 2001 (numbers 1, 2, 3, 5,

and 6)]. Many of these derived core

outcome variables used data from

various 2001 variables for the

derivation. The five derived core

outcome variables are:

+	 MET1: Families of CSHCN were

partners in decision-making and

satisfied with the services they

received (met conditions for MCHB

core outcome 1).

+	 MET2: CSHCN received

coordinated, ongoing comprehensive

care within a medical home (met

conditions for MCHB core outcome

2).

+	 MET3: Families of CSHCN had

adequate private or public insurance

to pay for the services they needed

(met conditions of MCHB core

outcome 3).

+	 MET5: Community-based service

systems were organized so that

families of CSHCN could use them

easily (met conditions for MCHB

core outcome 5).

+	 MET6: Youth and adolescents with

special health care needs received

the services necessary to make

transitions to adult life, including

adult health care, work, and

independence (met conditions of

MCHB core outcome 6).

A derived variable called REGION

gives geographic detail about SATH

cases in four census regions (Northeast,

Midwest, South, and West) based on

their 2001 state data. To create the

REGION variable, the original sampling

strata (78 Immunization Action Plan

(IAP) areas, later reduced to 55 IAP)

were collapsed into 18 strata by

systematically combining three to six

areas into each stratum. At no point

were areas in one census region

collapsed with areas in another census

region, so it is possible to calculate

regional estimates. One derived variable

was created exclusively from SATH

data: The variable PROXY was created

to examine the actual respondent(s)

during the course of the SATH interview

(proxy respondents were allowed to

respond for the young adult if he or she

was severely impacted by disability).

Citations

Any published material derived

from SATH data should acknowledge

CDC, NCHS, and SLAITS as the

original source. The suggested citation,

‘‘Data Source: Centers for Disease

Control and Prevention, National Center

for Health Statistics, State and Local

Area Integrated Telephone Survey,

Survey of Adult Transition and Health,

2007,’’ should appear at the bottom of

all tables. A disclaimer should also be

included crediting any analyses,

interpretations, or conclusions reached to

the author(s) (i.e., recipient of the data

file). NCHS and SLAITS are

responsible only for the initial data.

Using the acronyms SATH and

SLAITS in titles, keywords, and

abstracts of journal articles and

publications facilitates retrieval in

bibliographic searches.

Further Information

Data users can obtain the latest

information about the State and Local

Area Integrated Telephone Survey

mechanism by periodically visiting the

NCHS SLAITS website at http://

www.cdc.gov/nchs/slaits.htm. This site

features free, downloadable PUFs and

documentation for SLAITS modules;

important information about any

modifications or updates to data and

documentation; and current contact

information. After reviewing appropriate

documentation, questions may be

e-mailed to slaits@cdc.gov.

Researchers may also wish to join

the SLAITS electronic mail listserv. To

subscribe or unsubscribe, visit

http://www.cdc.gov/nchs/slaits/

slaits_listserv.htm and follow the

directions listed. The listserv has

approximately 1,000 global subscribers

who use SLAITS data or are interested

in the SLAITS mechanism. Subscribers

periodically receive e-mail with news

about SLAITS surveys, new releases of

data or documentation, publications, or

related conferences. Listserv

membership is not shared.

For more information on NCHS, its

publications, or data files, contact:

Data Dissemination Branch, NCHS

3311 Toledo Road

Hyattsville, MD 20782–2003

Telephone: 301–458–INFO (4636),

866–441–NCHS (6247)

E-mail: nchsquery@cdc.gov

Internet: http://www.cdc.gov/nchs/

For more information on CDC,

contact CDC’s Information Contact

Center (CDC–INFO) in English or

Spanish by calling (800) CDC–INFO

(232–4636) or sending e-mail to

cdcinfo@cdc.gov. If you are hearingimpaired, contact CDC–INFO with a

TTY machine at (888) 232–6348. The

CDC–INFO fax line is (770) 488–4760.
Series 1, No. 52 [ Page 15

Guidelines for Data

Use

In the interest of mutual benefit,

NCHS requests that recipients of data

files cooperate in certain actions related

to their use.

Data users who wish to publish a

technical description of the data should

make a reasonable effort to ensure that

the description is not inconsistent with

that published by NCHS.

The Public Health Service Act

(Section 308d) provides that data

collected by NCHS may be used only

for the purpose of health statistical

reporting and analysis. Any effort to

determine the identity of any reported

case is prohibited by this law. NCHS

goes to great lengths to assure that the

identity of data subjects cannot be

disclosed. All direct identifiers, as well

as any characteristics that might lead to

identification, are omitted from the data

files. Any intentional identification or

disclosure of a person or establishment

violates the assurances of confidentiality

given to the providers of the

information. Therefore, users must:

+	 Use the data in these files for

statistical reporting and analysis

only.

+	 Make no use of the identity of any

person discovered, inadvertently or

otherwise, and immediately advise

the Director, NCHS, of any such

discovery at (301) 458–4500.

+	 Not link these data files with

individually identifiable data from

any other NCHS or non-NCHS data

files.

By downloading and using these data,

you signify your agreement to comply

with these statutory-based

requirements as stated.

References

1.	 McPherson M, Weissman G, Strickland

BB, et al. Implementing communitybased systems of services for children

and youths with special health care

needs: How well are we doing?

Pediatrics 113:1538–44. 2004.

2.	 Blumberg SJ, Olson L, Frankel M, et

al. Design and operation of the

National Survey of Children with

Special Health Care Needs, 2001.

National Center for Health Statistics.

Vital Health Stat 1(41). 2003.

3.	 Zell ER, Ezzati-Rice TM, Battaglia MP,

Wright RA. National Immunization

Survey: The methodology of a

vaccination surveillance system. Public

Health Rep 115:65–77. 2000.

4.	 Smith PJ, Battaglia MP, Huggins VJ, et

al. Overview of the sampling design

and statistical methods used in the

National Immunization Survey. Am J

Prev Med 20:S17–24. 2001.

Table G. Description of derived variables in public-use data file: 2007 SATH

Variable name	 Description

REGION................... Census regions (Northeast, Midwest, South, West), 2001
 

MSASTATR................. Metropolitan Statistical Area status with 500,000-person threshold, 2001
 

TOTADULT ................. Total number of adults in household, 2001
 

TOTKIDSR ................. Total number of children in household aged 0 to 17 years, 2001, recoded
 

TOTKIDSMR ................ Total number of male children in household aged 0 to 17 , 2001, recoded
 

TOTKIDSFR ................ Total number of female children in household aged 0 to 17 , 2001, recoded
 

NM_SPR .................. Total number of children in household with special health care need, 2001, recoded
 

NM_NSPR ................. Total number of children in household without special health care need, 2001, recoded
 

NM_SPMR . . . . . . . . . . . . . . . . . Total number of male children in household with special health care need, 2001, recoded
 

NM_SPFR ................. Total number of female children in household with special health care need, 2001, recoded
 

NM_NSPMR ................ Total number of male children in household without special health care need, 2001, recoded
 

NM_NSPFR ................ Total number of female children in household without special health care need, 2001, recoded
 

AGE2001 .................. CSHCN’s age in years, 2001
 

HISPANIC. . . . . . . . . . . . . . . . . . CSHCN of Hispanic or Latino origin, 2001
 

RACER ................... Race of target CSHCN, 2001
 

RACE_HI .................. Race of target CSHCN, Hawaii, 2001
 

RACEASIA ................. Race of target CSHCN with Asian specification, 2001
 

RACENAAN ................ Race of target CSHCN with American Indian or Alaska Native specification, 2001
 

RELATION ................. Respondent’s relationship to child, 2001, recoded
 

MOTHER_EDUCR ............ Education level of child’s mother, 2001
 

UNINS_YR . . . . . . . . . . . . . . . . . Past 12 months, CSHCN ever not insured, 2001
 

MS_UNINS ................. Past 12 months, number of months without insurance coverage, 2001
 

YS_UNINS ................. Number of years without insurance coverage, 2001
 

POVLEVEL ................. Poverty level of household based on HHS 2001 guidelines
 

MET1 .................... Did CSHCN meet conditions of 2001 MCHB Core Outcome 1?
 

MET2 .................... Did CSHCN meet conditions of 2001 MCHB Core Outcome 2?
 

MET3 .................... Did CSHCN meet conditions of 2001 MCHB Core Outcome 3?
 

MET5 .................... Did CSHCN meet conditions of 2001 MCHB Core Outcome 5?
 

MET6 .................... Did CSHCN meet conditions of 2001 MCHB Core Outcome 6?
 

UNINS . . . . . . . . . . . . . . . . . . . . In 2001, was CSHCN not insured using NCHS definition?
 

PROXY ................... Actual respondent(s) during course of SATH interview, 2007
 

NOTES: SATH is Survey of Adult Transition and Health. CSHCN is child or children with special health care needs. MCHB is Maternal and Child Health Bureau of the Health Resources and Services

Administration. NCHS is National Center for Health Statistics.
Page 16 [ Series 1, No. 52

5. National Immunization Survey. Data

user’s guide and Data documentation,

codebook and frequencies [online, by

survey year]. Available from:

http://www.cdc.gov/nis/data_files.htm.

6. Smith PJ, Hoaglin DC, Battaglia MP, et

al. Statistical methodology of the

National Immunization Survey,

1994–2002. National Center for Health

Statistics. Vital Health Stat 2(138).

2005. Available from: http://

www.cdc.gov/nchs/data/series/sr_02/

sr02_138.pdf. Accessed June 4, 2008.

7. McPherson M, Arango P, Fox H, et al.

A new definition of children with

special health care needs. Pediatrics

102:137–40. 1998.

8. U.S. Department of Health and Human

Services, Health Resources and

Services Administration, Maternal and

Child Health Bureau. The National

Survey of Children with Special Health

Care Needs, Chartbook 2005–2006.

Rockville, MD. 2007.

9. Bethell CD, Read D, Stein RE, et al.

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POVERTY. Accessed October 29, 2009.
Page 18 [ Series 1, No. 52

Appendix I. Summary of Survey Strengths, Limitations, and

Appropriate Use

Certain features of the 2007 Survey

of Adult Transition and Health (SATH)

sample design and data set should be

considered prior to analysis. The

features discussed below are detailed

throughout the report but summarized

here for easy reference.

Strengths

+	 Largest survey conducted to date

with this subgroup. To our

knowledge, this file contains the

largest publicly available national

sample to study the transition period

of children with special health care

needs (CSHCN). The topics covered

in this survey are relevant to policy

and yield a rich source of

information on a rare population.

+	 Identical variables assessed at 2

points in time, 6 years apart.

Because of the follow-back design

feature, longitudinal data are

available.

+	 Single data file. The 2001 and 2007

variables are included in a single

public-use data file (PUF) for ease

of use.

+	 Self-reported data from young

adults. In 2001, the survey

respondent was the parent or

guardian who was most

knowledgeable about the health and

health care of the sampled CSHCN.

In 2007, data were collected directly

from the subject of the 2001

interview.

+	 Cooperation and refusal rates.

Although this survey has a relatively

low response rate—17.5% using

standards of the American

Association of Public Opinion

Research (AAPOR) (21)—this rate

is primarily driven by the inability

to contact the original respondents

in responding households and is not

due to a high refusal rate.

Approximately 7,409 (68%) of the

original 2001 parent or guardian

respondents could not be contacted.

When we were able to contact the

2001 respondent and obtained

current contact information for the

young adult, many eligible subjects

chose to participate. Of the young

adults we were able to contact,

almost all of them cooperated; the

AAPOR cooperation rate was just

over 98%.

Limitations

+	 Sample design. A total of 10,933

cases eligible for follow-up were

identified in the 2001 National

Survey of Children with Special

Health Care Needs (NS-CSHCN).

The 2001 survey was a crosssectional random-digit-dial (RDD)

telephone survey, and was not

originally designed as a longitudinal

survey. Very limited, 6-year-old

contact information was available to

locate these households in 2007.

Telephone numbers sampled in 2001

were dialed first to locate the 2001

original respondent. If this person

could be located, current contact

information was requested for the

eligible SATH young adult so that

he or she could be interviewed

personally. If the telephone number

was not useful, the case was

researched using commercial means

to try to find the original

respondent. Many of these attempts

were not fruitful.

+	 Interview completion rate.

Completed interviews were obtained

from 1,916 young adults, of which

1,865 cases are included in the

SATH PUF. The unweighted SATH

interview completion rate was

17.5%.

+	 Nonresponse bias. Sampling

weights for the 2007 SATH data set

were derived from the original 2001

NS-CSHCN sampling weights.

SATH weights were then adjusted

for nonresponse to the SATH

interview with demographic

information from the 2001

NS-CSHCN. To date, an extensive

analysis of SATH nonresponse bias

has not been completed. Young

adults from households that did not

move from 2001 through 2007 are

likely overrepresented in the data set

and may differ in important ways

from young adults who live in

households that moved during that

period.

Appropriate Use

Because of the sample design,

response rate, and the possibility of

nonresponse bias, the SATH sample may

be considered as a purposive sample

rather than a random sample. Data from

a purposive sample should not be used

to conclusively test hypotheses.

However, these data are worthwhile for:

+	 Hypothesis generation, or

developing ideas to be substantiated

in data analyses with other, more

robust data sets (e.g., those drawn

from random samples).

+	 Exploratory analysis of relationships

between variables, recognizing that

results may only be narrowly

extrapolated and cannot be

generalized to the national

population of young adults with

special health care needs.

Analysts should include a disclaimer in

their work that credits any analyses,

interpretations, or conclusions reached to

the author(s) (i.e., recipient of the data

file) and not to the National Center for

Health Statistics, which is responsible

only for the initial data.
Series 1, No. 52 [ Page 19

Appendix II. Locating Protocol for 2001 Respondents and 2007

Eligible Cases

Use of Detailed Locating

Protocol

One objective of the 2007 Survey

of Adult Transition and Health (SATH)

was to evaluate a methodology to locate

eligible random-digit-dial (RDD) sample

cases based solely on a telephone

number in the absence of other

information. For the 2007 SATH, case

locating began with a residential

telephone number that was last dialed 6

or 7 years earlier for the 2001 National

Survey of Children with Special Health

Care Needs (NS-CSHCN). In addition to

the elapsed time since the

2001interview, locating activities were

also essential due to the high anticipated

mobility of the young target population.

SATH locating activities identified cases

that qualified for locating; required

cross-training for SATH interviewers as

locators; generated leads with results of

computer database searches; and dialed

leads in an attempt to identify the 2001

household and respondent and gain

current contact information for the 2007

SATH case. A lead could be any piece

of information such as a name, address,

or updated telephone number.

Identifying cases subject to

targeted locating

The entire SATH sample was dialed

initially within the computer-assisted

telephone interviewing (CATI) system to

determine whether the telephone number

was still a working number, and if so,

whether it connected to the household

that completed the 2001 NS-CSHCN

interview. Because respondent name and

address information were collected in

2001, there was no advantage to

submitting the 2001 telephone numbers

to a commercial prescreening process

(such as Targus or Marketing System

Group’s GENESYS) to attempt to match

the telephone number to a valid address.

If the telephone number connected to

the 2001 NS-CSCHN respondent or

someone who could provide updated

contact information for the 2001

respondent, the case remained in the

CATI system. If the telephone number

did not connect to the 2001 respondent

or to someone who knew his or her

whereabouts, the case was transferred to

the CM-Locating system, a proprietary

computer software program used to

manage information generated during

the locating process. These cases were

subject to additional locating efforts.

Locating Training

SATH interviewers were

cross-trained as locators to maximize

efficiency and increase the yield of

completed interviews, because they

could segue immediately into the

consent process and interview if the

respondent were located. To gather

case-specific information to complete

these tasks, a commercial computer

database and a proprietary program were

used to generate and manage leads.

Accurintt, a widely used locate-andresearch database tool available to

government, law enforcement, and

commercial customers, was used by the

National Opinion Research Center in

this project. Through numerous

hands-on activities and exercises,

trainees learned methods to pinpoint the

intended respondent using these data as

well as techniques to perform

Internet-based searches if the leads were

unproductive. Trainees also learned to

use a proprietary software package

called CM-Locating to support

respondent locating activities by

tracking and documenting locating

progress. In this system, supervisors and

locators entered updated contact

information for located cases, tracked

leads, and assigned case disposition

codes as ‘‘final unlocatables.’’ Finally,

trainees learned to navigate between

CM-Locating and the data collection

software (Fusion CATI) in the event

they located a respondent who was

immediately available to complete the

interview.

Before being given access to the

CM-Locating system and information

returned by Accurintt, SATH staff

received explicit guidelines on the use

and limitations of locating information

for project-authorized use. The

guidelines clearly stipulated criteria

authorized as search elements (e.g.,

telephone number and address) and

those that were not (e.g., credit history,

criminal history, and searches for

noneligible SATH individuals). Locators

were informed that their efforts were

subject to periodic and random reviews

to ensure resources were being used

responsibly, and that any violations

would be subject to immediate action

including (but not limited to)

termination, legal action, or referral to

federal or state regulatory agencies.

Identifying Cases Qualified

for Locating

The entire sample was dialed during

approximately 2 weeks prior to transfer

of any cases to locating to ensure that a

sufficient number of dials had been

placed to each number. Table I shows

seven call outcomes that qualified a case

for locating, and the number of cases

that qualified under each outcome.

An additional 1,915 cases with two

or more noncontact outcomes during

CATI dialing were transferred to

locating during the final 2 weeks of the

field period. These cases were added to

the system in an attempt to verify

telephone numbers or locate new

numbers using information returned

from Accurintt. The numbers also

continued to be dialed in the CATI

system, in case interviewers were able

to contact someone and locate the 2001

respondent.

Types of Accurintt

Database Searches

Two types of searches were

performed in the Accurintt database: an
Page 20 [ Series 1, No. 52

initial ‘‘custom batch reverse search’’ for

all cases, followed by a ‘‘standard batch

search’’ for only those cases identified

as needing additional locating

information. The searches differed in the

recency and type of information yielded.

Initial custom batch reverse

search

SATH presented unique locating

challenges because the only piece of

information initially available was the

2001 NS-CSHCN, RDD-generated

telephone number. The Accurint®

database was used for a custom batch

reverse search to yield names and

addresses of persons ever associated

with the sampled telephone numbers. Of

the 10,933 cases submitted, reverse

search results were produced for 6,123

cases (56%). On average, the custom

batch reverse search returned 1.8 leads

per case, with a range of 1 to 12 leads

per case (defined as any piece of

information such as a name, address, or

updated telephone number). This file of

reverse search results was used to start

the Accurintt current or standard batch

search for cases identified in CATI that

still needed to be located.

Current batch search

Names and addresses obtained from

the custom batch reverse search were

used to run a standard batch search for

only those cases that needed to be

located. This search provided current

telephone numbers or address

information associated with an

individual. Of the 4,377 cases that

needed to be located, 1,289 cases

(29.4%) received current batch search

results. On average, the current batch

search returned 2.6 leads for each case,

with a range of 1 to 28 leads per case.

Results from the current batch search

were loaded into the CM-Locating

system and assigned to locators. No

current information was returned for

1,104 cases (25.2%). For these cases,

the names and addresses obtained from

the custom reverse batch search were

loaded into CM-Locating as a starting

point to generate leads via Internet

searches. On average, these cases had

1.9 leads per case, with a range of 1 to

8 leads per case. No ‘‘ever’’ or

‘‘current’’ Accurintt information was

available for the remaining 1,984 cases

(45.3%), which were finalized as ‘‘final

unlocatable.’’ Table II illustrates

Accurintt return rates by sample type.

An overview of case flow through the

locating searches and protocol is

presented graphically in appendix

Figure.

Locating Protocol

Supervisors assigned cases to be

located to two-person teams who

worked complementary schedules (e.g.,

different shifts), which allowed locators

to work together efficiently to place the

requisite number of call attempts to each

lead, begin or complete an interview

once the respondent was located, or

finalize the case as unlocatable.

Although team members worked

different shifts, they communicated case

details such as stopping points, the value

of certain leads, and contact information

to each other via case notes.

Locators focused their efforts on

cases deemed more attainable.

Additional resources were allocated to

imperative cases. Many Internet search

pages directed locators to the Intelius

website (http://www.intelius.com), which

searches public records and returns

locating information for a fee. Locating

activities were limited to free Internet

searches due to budgetary constraints,

and to limit duplicative information

since Intelius searches were not likely to

return different information than an

Accurintt search since both search

public records.

Locators dialed through the

potential current telephone numbers

provided by Accurintt to attempt to

reach the 2001 NS-CSHCN respondent.

If this resulted in no contact after three

dialing attempts completed at three

different times (e.g., weekday,

weeknight, and weekend), or if all

Accurintt leads failed to produce a

result, locators performed one Internet

search using each name and address

provided by Accurintt. This basic

Internet search was run at http://

www.theultimates.com, a website that

simultaneously searched six different

search engines including http://

www.infospace.com, http://

www.dogpile.com, http://

www.whitepages.com, http://

www.yahoo.com, http://

www.whowhere.com, and http://

www.switchboard.com. If this search

produced more than 10 leads or the

same results as Accurintt, it was

considered ‘‘failed.’’ If it yielded 10

leads or less, the locator dialed through

each lead in at least three attempts at

different dates and times (e.g., weekday,

weeknight, and weekend). If these leads

failed for a standard case, the case

disposition was finalized.

The same protocol was applied to

imperative cases. If all locating steps

failed, imperative cases were assigned to

one of four advanced locators for

additional searches. Advanced locators

used http://www.zabasearch.com, a

Table I. Survey call outcomes and number of cases qualified for locating: 2007 SATH

Number of

cases

Call outcome qualifying

Business or government line only .................................. 300

Disconnected, number changed, or respondent no longer at this number .......... 2,811

Fast busy, fax or modem, or technical problems on two successive attempts........ 550

Household did not speak English................................... 0

Per the respondent if he or she could be located (or the person answering the phone if

not), household did not have a child with the given birth date or age range ....... 390

Maximum hang-ups during introduction or refusals1 ....................... 226

Supervisor review or other case review determined that case required locating ...... 100

Total number of cases that qualified for locating.......................... 4,377

1

If a case reached the maximum number of hang-ups during the introduction or the maximum number of refusals, and interviewers

had not been able to determine if the telephone number reached the 2001 household, the case was sent to locating to determine

whether the AccurintT information noted if that number still belonged to the 2001 respondent. If the telephone number had changed

hands since 2001, locators attempted to find a new telephone number for the 2001 respondent. If the telephone number had not

changed hands since 2001, the case was finalized as a refusal.

NOTE: SATH is Survey of Adult Transition and Health.
Series 1, No. 52 [ Page 21

website that browses various public

records, and http://www.superpages.com

for additional advanced white pages

searches. This included a search that

returned variations on the searched

name rather than exact matches, and

reverse searches of telephone numbers

to obtain the names of persons to whom

the numbers are currently listed.

When dialing leads, locators used

the following introduction if a person

answered the telephone:

‘‘Hello. My name is , and

I’m calling from the National

Opinion Research Center at the

University of Chicago. In 2001, we

may have conducted a survey with

an adult in this household about the

health care of a child who was

approximately <AGE> years old.

The child would now be about

<AGE PLUS 6>. If possible, I’d

like to speak with that child’s

<RELATION> now. Is <he/she>

available?’’

After this introduction, locators followed

a script that guided them through four

different scenarios:

+	 If the 2001 respondent was

confirmed and available, the locator

immediately attempted to complete

the screener with the 2001

respondent to identify the location

of the 2007 SATH respondent (or if

the 2007 SATH respondent was

immediately available, to complete

the interview with him or her).

+	 If the locator confirmed the 2001 or

2007 respondent resided in the

household but was currently

unavailable, appointments were

scheduled to call the respondent.

+ If the 2001 respondent did not

reside in the household but the

person answering the telephone

knew him/her, locators probed to

obtain new address and telephone

information.

+	 If the person who answered the

telephone refused to provide contact

information, the locator left the

project’s toll-free number and asked

that it be given to the respondent. If

the person who answered the

telephone did not know the current

contact information, the locator

finalized the case as unlocatable.

Locating Quality Control

Locating supervisors worked closely

with locating teams to monitor progress,

offer assistance, and respond to

questions or concerns. On a daily basis,

supervisors reviewed case notes to offer

direction for cases that proved

particularly difficult.

Locating source success rates

Locators attempted to find

respondents during the final 7 weeks of

the 11-week field period. Of the 4,377

cases identified for locating, 1,984

received no Accurintt results and were

deemed unlocatable before cases were

assigned to locating teams. Locators

worked the remaining 2,393 cases for

which Accurintt information was

available. Relying solely on Accurintt

returns and free Internet searches, they

located respondents for 208 cases (8.7%

of the 2,393 workable cases). Table III

shows success rates by sample type

among all cases identified for locating

(n = 4,377).

Table IV shows success rates by

sample type when the analysis is limited

to cases with information returned from

the Accurintt searches (n = 2,393).

Table V provides the total number

of cases located by sample type, and

Table II. AccurintT return rates, by sample type: 2007 SATH

Number of cases identified for locating, by type

Standard

n=4,101

Imperative

n = 276

Total

n=4,377

Current batch search ..................

Custom batch reverse search .............

No AccurintT data (final unlocatable).........

29.1%

(n = 1,195)

25.1%

(n = 1,029)

45.8%

(n = 1,877)

35.1%

(n = 94)

27.2%

(n = 75)

38.8%

(n = 107)

29.4%

(n = 1,289)

25.2%

(n = 1,104)

45.3%

(n = 1,984)

NOTES: SATH is Survey of Adult Transition and Health. AccurintT return categories are mutually exclusive.

Table III. Locating and interviewing success rates for all cases, by sample type: 2007 SATH

Standard Imperative Total

Number of cases identified for locating .......................... 4,101 276 4,377 
 

Number of cases located ................................... 179 29 208 
 

Number of cases in which interview was completed .................. 105 12 117 
 

Percentage of cases located ................................ 4.4% 10.5% 4.8% 
 

Percentage of located cases in which interview was completed ........... 58.7% 41.4% 56.3% 
 

Percentage of cases identified for locating in which interview was completed . . 2.6% 4.3% 2.7%
 

NOTE: SATH is Survey of Adult Transition and Health.

Table IV. Locating and interviewing success rates for cases with AccurintT information, by

sample type: 2007 SATH

Standard Imperative Total

Locating cases with AccurintT information ........................

Number of cases located ...................................

2,224

179

169

29

2,393

208

Number of cases in which interview was completed .................. 105 12 117

Percentage of cases located.................................

Percentage of located cases in which interview was completed ...........

Percentage of cases with AccurintT information in which interview was

completed ...........................................

8.0%

58.7%

4.7%

17.2%

41.4%

7.1%

8.7%

56.3%

4.9%

NOTE: SATH is Survey of Adult Transition and Health.
 

 

 

No “ever” or “current” information available for 1,984 cases; 

coded as “final unlocateable.” 

Current information available for 1,289 cases; loaded into 

program and assigned to locators. 

No current information available for 1,104 cases but had “ever” information. 

Names and addresses loaded into program to start Internet searches. 

Locators dialed through current information to find 2001 R. 

Dialed 2001 telephone numbers for all 10,933 SATH-eligible cases to identify 

cases that needed to be located. 

Initial search to identify information on all persons ever associated with 2001 

telephone numbers. Total of 6,123 cases returned with “ever” information 

(custom batch reverse search). 

Used as starting point to locate all persons currently associated with 2001 

telephone numbers (current batch search). 

One Internet search performed for those with ever or current 

information that did not yield results. 

If 10 or more leads or same information as 

above, case finalized as “unlocateable.” 

If less than 10 new leads, locators made three contact attempts 

(weekday, weeknight, and weekend). 

If “standard” case and leads failed, case finalized. If “imperative” case and leads failed, assigned to locators for more searches. 

Additional Internet searches to locate 2001 R: 

Outcome 1: 2001 R located—asked for current contact Information for SATH-eligible case. 

Outcome 2: 2001 R and 2007 SATH-eligible R lived in same household but were 

unavailable—made call-back appointment. 

Outcome 3: 2001 R did not live in household—asked for current contact information or 

someone who might know it. 

Outcome 4: Refused to give any information—left toll-free SATH project telephone number 

with request for 2001 R to call back. 

NOTES: SATH is the 2007 Survey of Adult Transition and Health. R is respondent. 

SOURCE: CDC/NCHS, Survey of Adult Transition and Health, 2007. 

Figure. Case flow through locating searches and protocol: 2007 SATH

Page 22 [ Series 1, No. 52
 
Series 1, No. 52 [ Page 23

whether the case was ultimately located

based on Accurintt information or

Internet searches. In some instances, the

ultimate source of locating information

could not be determined based on a

review of case notes.

Overall Locating Results

The preceding section described

locating efforts that occurred within the

CM-Locating system but outside of the

SATH CATI screener. Although the

CATI screener and CM-Locating efforts

were managed in separate systems, both

techniques supported SATH interview

completion.

The final SATH case dispositions in

Appendix VII provide a hierarchical

summary of whether interviewers and

locators were able to locate the 2001

and 2007 respondents and complete the

SATH interview. Overall, interviewers

located 3,524 NS-CSHCN respondents

from 2001 (or 32.2% of the SATH

sample). The vast majority were located

with the SATH CATI screener (n =

3,316, or 94% of the located cases—that

is, the case never qualified for locating

within CM-Locating because the

respondent either resided in a household

still associated with the 2001 telephone

number, or valid contact information

was provided to locate the 2001

respondent). Only 208 respondents were

found through more extensive efforts

that hinged on Accurintt or Internet

search information.

Number of Calls Placed to

Locate Cases

The CATI system tracked the

number of calls placed to locate the

2001 respondent, begin the SATH

survey with the 2007 respondent, and

complete the SATH interview. However,

these data underreport the actual total

number of calls placed, because calls

made to locate the respondent with

Accurintt or Internet searches are not

included.

On average, interviewers placed one

less call to locate standard cases

(mean = 6.4 calls, median = 4.0 calls,

SD = 5.98) than imperative cases

(mean = 7.5 calls, median = 5.0 calls,

SD = 8.42). When the 2001 respondent

was located, both standard and

imperative cases required approximately

four additional calls to begin the 2007

SATH interview (standard cases: mean =

3.8 calls, median = 2.0 calls, SD = 5.2;

imperative cases: mean = 4.1 calls,

median = 2.0 calls, SD = 6.1). Once

contact was made with the 2007 eligible

cases, the vast majority of standard and

imperative SATH case respondents

completed the interview on the same

call (standard cases: mean = 0.1 calls,

median = 0.0 calls, SD = 0.7;

imperative cases: mean = 0.1 calls,

median = 0.0 calls, SD = 0.8).

Table V. Source of locating information, by sample type: 2007 SATH

Standard Imperative

Total cases located (n) ................. 179 (86.1%) 29 (13.9%)

From AccurintT ...................... 117 (65.4%) 16 (55.5%)

From Internet sources ................. 15 (8.4%) 8 (27.6%)

From other sources1 .................. 20 (11.2%) 2 (6.9%)

Unable to determine................... 27 (15.1%) 3 (10.3%)

Total

208 (100%)

133 (63.9%)

23 (11.1%)

22 (10.6%)

30 (14.4%)

1

Includes cases located using unidentified Internet sources as well as information provided by contact persons that led to the

respondent.

NOTE: SATH is Survey of Adult Transition and Health.
Page 24 [ Series 1, No. 52

Appendix III. 2007 SATH Questionnaire

The following public burden estimate statement was available as a CATI screen:

According to the Paperwork Reduction Act (PRA) of 1995, no persons are required to respond to a collection of information

unless such collection displays a valid OMB control number. The valid OMB control number for this information collection is

0920–0406. The time required to complete this information collection is estimated to average 15 minutes per response,

including the time to review instructions, search existing data resources, gather the data needed, and complete and review the

information collection. If you have any comments about the accuracy of the time estimate(s) or suggestions for improving this

form please write to: CDC Reports Clearance Officer, 1600 Clifton Road, MS-D74, Atlanta, GA 30333; call 404–639–4794; or

send an e-mail to omb@cdc.gov.

Data collection conducted under contract to the CDC by the National Opinion Research Center (NORC) at the University of

Chicago.

Form approved

OMB No. 0920–0406

Exp. Date 11/30/07

2007 Survey of Adult Transition and Health (SATH) Questionnaire

Screener Part 1: LOCATE AND SCREEN 2001 NS-CSHCN RESPONDENT ........................................ 26 
 

Screener Part 2: OBTAIN CONSENT FROM 2001 NS-CSHCN R AND DETERMINE PROXY R ....................... 32 
 

Screener Part 3: COLLECT YOUTH (2007 R) IDENTIFIERS AND LOCATING INFORMATION ....................... 35 
 

Screener Part 4: COLLECT IDENTIFIERS AND LOCATING INFORMATION FOR 2001 OR 2007 R LEADS ............ 39 
 

CATI QUESTIONNAIRE INTRODUCTION ................................................................... 46 
 

WEB QUESTIONNAIRE INTRODUCTION ................................................................... 48 
 

Section 1: HEALTH AND FUNCTIONAL STATUS ............................................................. 49 
 

Subdomain 1. General health status ............................................................... 49 
 

Subdomain 2. Activity limitations—Daily living..................................................... 50 
 

Subdomain 3. Activity limitations—Work .......................................................... 51 
 

Subdomain 4. Activity limitations—School ......................................................... 53 
 

Subdomain 5. Activity limitations—Taking care of house or family ..................................... 55 
 

Section 2: MEDICAL HOME................................................................................ 56 
 

Subdomain 1. Usual place for care................................................................ 56 
 

Subdomain 2. Continuous screening............................................................... 57 
 

Subdomain 3. Foregone or delayed care ........................................................... 58 
 

Subdomain 4. Care coordination.................................................................. 59 
 

Subdomain 5. Person-centered care ............................................................... 60 
 

Section 3: TRANSITION SERVICES RELATED TO HEALTH .................................................... 62 
 

Section 4: COMMUNITY-BASED SERVICES.................................................................. 63 
 

Section 5: HEALTH INSURANCE COVERAGE................................................................ 64 
 

Subdomain 1. Current coverage and past-year coverage............................................... 64 
 

Subdomain 2. Adequacy of health insurance ........................................................ 65 
 

Section 6: TRANSITION SERVICES RELATED TO SCHOOL.................................................... 66 
 

Section 7: SELF-DETERMINATION ......................................................................... 67 
 

Section 8: SATISFACTION AND SUPPORT ................................................................... 68 
 

Section 9: DEMOGRAPHICS ............................................................................... 69 
 

Subdomain 1. Marital status and living arrangements................................................. 69 
 

Subdomain 2. Personal earnings and program participation ............................................ 70 
 
Series 1, No. 52 [ Page 25
 

CATI QUESTIONNAIRE EXIT.............................................................................. 71 
 

WEB QUESTIONNAIRE EXIT.............................................................................. 72 
 

CALLBACK SCRIPTS AND ANSWERING MACHINE SCRIPTS................................................. 73 
 

ANSWERING MACHINE SCRIPTS ......................................................................... 77 
 
Page 26 [ Series 1, No. 52

Screener Part 1: LOCATE AND SCREEN 2001 NS-CSHCN RESPONDENT

INTRO_1	 Hello, my name is . I’m calling on behalf of the Centers for Disease Control and

Prevention. May I please speak to someone who is 18 years of age or older?

(1) YES, I AM ? 18 YO ........................................................ [GO TO INTRO_1A]
 

(2) THIS IS A BUSINESS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(3) LANGUAGE BARRIER (ANY LANGUAGE OTHER THAN ENGLISH) . . . . . . . . . [GO TO TERM_BRIEF]
 

(4) NO PERSON AT HOME WHO IS OVER 17 ........................................ [GO TO S2_B]
 

(5) ANSWERING MACHINE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO MSG_PENDING SCREENED]
 

(6) R WILL CALL 800 LINE/VERIFY WEBSITE ......................... [GO TO UE-M1_NAME_WEB]
 

(7) R ASKS FOR LETTER—MAILED .................................. [GO TO UE-M1_NAME_WEB]
 

(8) R ASKS FOR LETTE—E-MAILED .................................. [GO TO UE-M1_NAME_WEB]
 

(9) SUPERVISOR REVIEW	 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CALL NOTES BOX]

(RAISE YOUR HAND TO GET PERMISSION BEFORE USING THIS CODE)

SALZ_BUS	 We are interviewing only private residences. Thank you very much.

[TERMINATE INTERVIEW]

S2_B	 Does anyone live in your household who is over 17 years old?

(1) YES ............................................... [GO TO [BLANK] SCRIPT SHOWN BELOW]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]

[BLANK] Thank you, we’ll try back another time.

PH_CONF	 Before I go, I’d like to confirm the telephone number I have dialed. Is this area code [FILL TELEPHONE]?

(1) YES ...................................................................... [GO TO PH_TIME]
 

(2) NO, MISDIAL 	 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO TERM_TY]
 

(3) NO, NUMBER HAS CHANGED/NUMBER FORWARDED . . . . . . . . . . . . . . . . . [GO TO NEWTELEPHONE]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO TERM_TY]

NEWTELEPHONE_1 Can you tell me what number I have reached?

Nnn-nnn-nnnn ................................................................. [GO TO PH_TIME]

PH_TIME How many years have you had this telephone number (FILL 1–866–900–9601)?

(1) LESS THAN FOUR YEARS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO SALZ_BUS IF INTRO_APPT01R
 

OR

INTO_APPT_PNDG_SCRD=2 ELSE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . GO TO TERM_TY]

(2) MORE THAN FOUR YEARS .............................. [GO TO SALZ_BUS IF INTRO_APPT01R
 

OR

INTO_APPT_PNDG_SCRD=2 ELSE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . GO TO TERM_TY]

TERM_TY	 Those are all the questions I have. I’d like to thank you on behalf of the Centers for Disease Control and

Prevention for the time and effort you’ve spent answering these questions. (If you would like more information

about the Survey of Adult Health and Transition, please call the study’s toll-free number, 1–866–900–9601.)
Series 1, No. 52 [ Page 27

INTRO_1A	 In (INTDATE-YYYY), we conducted a nationwide telephone study on children’s health with an adult at this

telephone number about a child who was between the ages of 14–18 years of age at the time. This child would

now be approximately [FILL AGE] years old. The Centers for Disease Control and Prevention is now interested in

speaking to this [FILL AGE]-year-old’s [FILL RELATION] again.

Is [he/she] available?

(1) YES, CURRENTLY SPEAKING WITH HIM/HER ............................ [GO TO INTRO_2001R]
 

(2) YES, R2001 COMES TO THE TELEPHONE ................................ [GO TO INTRO_2001R]
 

(3) YES, R2001 IS AVAILABLE BUT NEEDS THE IWER

TO CALL BACK SO R CAN SWITCH TO TTY . . . . . . . . . . . . . . . . . . . . . . .[GO TO RELAYNOW_ R2001]

(4) THIS PERSON NEEDS THE INTERVIEWER TO CALL BACK LATER AND

CONDUCT THE INTERVIEW USING TTY . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO RELAYCBK_ R2001]

(5) LANGUAGE BARRIER (ANY LANGUAGE OTHER THAN ENGLISH) . . . . . . . . . [GO TO TERM_BRIEF]
 

(6) NO SUCH PERSON AT THIS NUMBER . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO TELEPHONE_01 INFO]
 

(7) NO, THE PERSON YOU NEED TO SPEAK WITH IS NOT AVAILABLE. . . . . . . . . . . . . . . . . [GO TO CB1]
 

(8) NO, R2001 HAS MOVED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_CONT]
 

(9) NO, 2001 RESPONDENT IS HOSPITALIZED, INSTITUTIONALIZED OR

INCARCERATED ............................ . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO TERM_TY]

(10) NO, 2001 RESPONDENT IS DECEASED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO F1Q]
 

(11) NO, 2001 RESPONDENT IS SERVING IN THE MILITARY OR LIVING

OUTSIDE USA . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO TERM_TY]

(12) NO, THE PERSON DOES NOT KNOW HOW TO CONTACT THE R2001 .......... [GO TO REACH_5]
 

(13) PERSON WANTS TO VERIFY THE LEGITIMACY OF THE SURVEY OR

NEEDS ADDITIONAL INFORMATION . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO M1_NAME_WEB (UE)]

(14) R KNOWS 2 OR MORE POSSIBLE 2001 RESPONDENTS WHO LIVE OR

USED TO LIVE AT THIS NUMBER . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO DOB_PROBE]

(15) IF VOLUNTEERED: YOUTH IS SERVING IN THE MILITARY OR LIVING

OUTSIDE USA . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO WEB_OFFER]

(16) IF VOLUNTEERED: YOUTH IS HOSPITALIZED, INSTITUTIONALIZED OR

INCARCERATED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO TERM_TY]

(17) IF VOLUNTEERED: YOUTH DOES NOT HAVE ANY CONTACT INFO

(HOMELESS, ETC.) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO REACH_5]

(18) IF VOLUNTEERED: YOUTH IS DECEASED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO F1Q_Y_M]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO REACH_5]
 
Page 28 [ Series 1, No. 52

RELAYNOW_R2001

I have to call into the RELAY service to continue this interview. I will call you back in less than 5 minutes at

[FILL SAMPLED TELEPHONE 1–866–900–9601]. Please stay by your RELAY machine for the next 5 minutes.

Thank you, and good bye.

RELAYCBK_R2001

When would be a good time to call back to reach you using RELAY?

CREATE AN APPOINTMENT

TELEPHONE_01INFO

Do you know the person that had this telephone number in 2001?

(1) YES ................................................................... [GO TO R2001_CONT]

(2) NO .......................................................................[GO TO PH_CONF]

REACH_5 Do you know who else I can contact who might know this [FILL AGE_CALC] year-old’s / [FILL AGE_CALC]

year-old’s [RELATION] contact information?

(1) YES ............................................................... [GO TO LEAD_REACH_01

IF R2001 LEAD; LEAD_REACH_Y IF YOUTH LEAD]

(2) NO .......................................................................[GO TO PH_CONF]

(77) DON’T KNOW ............................................................[GO TO PH_CONF]

(99) REFUSED ................................................................[GO TO PH_CONF]

REACH_CB When would be a good time to call back to reach (an adult) at this telephone number who would know of anyone

who lives or used to live at this telephone number and is currently 19 to 23 years old?

(1) SET APPOINTMENT ........................................................[USE APPT ICON]

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[CALL NOTES BOX]

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[CALL NOTES BOX]

FILL CONTACT NAME AT APPOINTMENT SCREEN IF PROVIDED.

F1Q I’m sorry to hear that (FILL SEX—HE/SHE) passed away. Please accept my condolences.

(1) CONTACT SATH R OUTSIDE OF THIS HOUSEHOLD ..................... [GO TO YOUTH_CONT]

(2) SATH R AVAILABLE .................................................. [GO TO NEW_RESP_SC]

F1Q_Y I’m sorry to hear that (FILL SEX-HE/SHE) passed away. I was calling about a study we are conducting for the

Centers for Disease Control and Prevention but I will not need to continue. When did (FILL SEX-HE/SHE) pass

away?

MMDDYYYY

(77) DON’T KNOW

(99) REF ................................................................... [GO TO TERM_DTH]

TERM_DTH Thank you, and please accept my condolences. Goodbye.

DOB_PROBE The person with whom I would like to speak would be the [FILL RELATION] of a [FILL MALE/FEMALE] child

born on [FILL DOB-MMDDYYYY]. Do you know who this might be?

TRAINING POINT: FAQ ABOUT HOW WE HAVE DOB AND WHY WE NEED TO CONFIRM IT.

(1) YES ................................................................... [GO TO R2001_CONT]

(77) DON’T KNOW .......................................................... [GO TO REACH_CB]

PATH TO COLLECT POSSIBLE R2001’s CONTACT INFORMATION

R2001_CONT	 Could you please tell me the name of this [FILL CURRENT AGE] child’s [FILL RELATION]?

IWER INSTRUCTION: IF R NOT COMFORTABLE PROVIDING NAME, ACCEPT INITIALS.

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_NAME_A]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_NAME_D]
 

(77) DON’T KNOW ...................................................... [GO TO R2001_NAME_D]
 

(99) REFUSED	 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_NAME_D]
 
Series 1, No. 52 [ Page 29

R2001_NAME_A

What is the [FILL RELATION]’s first name?

FIRST

R2001_NAME_B

What is the [FILL RELATION]’s middle name?

MIDDLE

R2001_NAME_C

What is the [FILL RELATION]’s last name?

LAST

R2001_NAME_D

Does the [FILL RELATION] have a nickname, initials or another name that they may prefer?

(1) YES ................................................................ [GO TO R2001_NAME_E]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO R2001_PH_X]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO R2001_PH_X]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO R2001_PH_X]

R2001_NAME_E

What is the nickname or initials ?

NICKNAME/OTHER NAME

R2001_PH Could you please tell me (FILL R2001_NAME_A OR FILL R2001_NAME_D if given)’s (FILL BLANK OR

second. . .fifth) telephone number?

(1) YES ............................................. [RECORD telephone number(s) IN R2001_PH_X]

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_EM_X]

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_EM_X]

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_EM_X]

R2001_PH_X R2001 TELEPHONE NUMBER COLLECTION SCREEN

nnn-nnn-nnnn . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO R2001_PH_CONF]

R2001_PH_CONF_1

Is that a cellular telephone number?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_CONFHH]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_CONFHH]
 

(77) DON’T KNOW ...................................................... [GO TO R2001_CONFHH]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_CONFHH]
 

R2001_CONFHH_1

Is that number a private residence?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_PH_LOOP]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_PH_LOOP]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_PH_LOOP]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_PH_LOOP]

R2001_PH_LOOP

Does (FILL R2001_NAME_A OR FILL R2001_NAME_D if given) have another telephone number where

(he/she) can be reached?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO NEXT R2001_PH]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_EM_X]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_EM_X]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_EM_X]
 
Page 30 [ Series 1, No. 52

R2001_EM_X

Could you please tell me (FILL R2001_NAME_A OR FILL R2001_NAME_D if given)’s (FILL BLANK OR

second. . .fifth) electronic mail or e-mail addresses?

(1) YES . . . . . . . . . . . . . .[RECORD E-MAIL ADDRESS ELEMENTS IN R2001_MAIL_1 TO R2001_EMAIL_9]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_AD_X]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_AD_X]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_AD_X]

R2001_EMAIL_X

E-MAIL ADDRESS COLLECTION SCREEN

@

,

R2001_EM_CONF

Is this e-mail address for personal, business or school use?

(1) PERSONAL . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_EM_LOOP]
 

(2) BUSINESS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_EM_LOOP]
 

(3) SCHOOL USE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_EM_LOOP]
 

(77) DON’T KNOW ..................................................... [GO TO R2001_EM_LOOP]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_EM_LOOP]

R2001_EM_LOOP

Does (FILL R2001_NAME_A OR FILL R2001_NAME_D if given) have another e-mail address where (he/she)

can be reached?

(19) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO NEXT R2001_EM_X]
 

(19) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_AD_X]
 

(19) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_AD_X]
 

(19) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_AD_X]
 

R2001_AD_X Could you please tell (FILL R2001_NAME_A OR FILL R2001_NAME_D if given)’s [FILL BLANK OR

second. . .fifth] street address or addresses [IF R2001PH_1 through R2001PH_9 not equal null then FILL in case

we cannot reach them by telephone]?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_AD_ST_X]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_01R]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_01R]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_01R]
 

R2001_AD_ST_X

What is the street address?

R2001_AD_APT_X

What is the apartment number?

APT #

R2001 _AD_CITY_X

What is the city and state?

CITY

R2001 _AD_STATE_X

State Dropdown Menu
Series 1, No. 52 [ Page 31

R2001_AD_ZIP_X

What is the zip code?

ZIP . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001CONYHH]

R2001CONYHH_X

Is that address a private residence?

(1) YES ............................................................... [GO TO R2001_AD_LOOP]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_INST]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_01R]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_01R]
 

R2001_ INST _X

Can you describe the type of residence?

(1) UNIVERSITY/COLLEGE HOUSING (DORM) ........................... [GO TO R2001_AD_LOOP]
 

(2) MILITARY BASE ................................................... [GO TO R2001_AD_LOOP]
 

(3) PRISON . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_AD_LOOP]
 

(4) OTHER INSTITUTION ............................................... [GO TO R2001_AD_LOOP]
 

(77) DON’T KNOW ..................................................... [GO TO R2001_AD_LOOP]
 

(99) REFUSED ......................................................... [GO TO R2001_AD_LOOP]

R2001_AD_LOOP

Does (FILL R2001_NAME_A OR FILL R2001_NAME_D if given) have another address where (he/she) can

receive mail?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO NEXT R2001_AD_X]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_01R]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_01R]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_01R]

CONF_INTRO_01R

I would like to confirm that I have the correct information for the person that we’ll be contacting.

CONF_NAME_01R

The name I have for this person is [FILL NAME OF FROM R2001NAME_A- R2001_NAME_D].

Is this correct?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_FUTCONT]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_CONT AND EDIT]

R2001 FUTCONT

May we contact you again if we have problems contacting this person who may have completed the 2001

interview?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO FUTCONT_NAME]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]

FUTCONT_ NAME

What is your name?

NAME

FUTCONT _PHCONF

TELEPHONE NUMBER COLLECTION SCREEN
 

nnn-nnn-nnnn . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 
Page 32 [ Series 1, No. 52

Screener Part 2: OBTAIN CONSENT FROM 2001 NS-CSHCN R AND DETERMINE

PROXY R

INTRO_2001R

(NOTE: Text in parentheses will appear if speaking with R2001. If R2001 is deceased, text in parentheses will be

omitted.)

In [INTDATE-YYYY] we conducted a nationwide children’s health care telephone study with (you) about a [FILL

AGE] year-old child in your household. (Thank you for participating in the 2001 interview.) The

Centers for Disease Control and Prevention would like to enhance the information (you) provided in 2001 by

speaking to (this/your) child about his or her current heath care. This child would now be [FILL AGE_CALC=

’INTDATE MINUS DOB’ PLUS ’CURRENTINTDATE-INTDATE’ = ’CURRENT AGE IN 2007’]. In

appreciation, we’d like to offer [FILL SEX—him/her] $20. [FILL SEX—He/She] can be interviewed by telephone,

or complete the survey on the Internet. (I’d like to continue unless you have any questions.)

IWER INSTRUCTION: IF NO QUESTIONS, ASK THE FOLLOWING:

Can you tell me how to find this [FILL AGE_CALC]-year-old?

(1) YES, YOUTH COMES TO TELEPHONE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO NEW_RESP_SC]
 

(2) YES, OUTSIDE OF HH/MOVED ......................................... [GO TO YOUTH_CONT]
 

(3) YES, TWO OR MORE PEOPLE THAT AGE LIVE OR USED TO LIVE AT THIS

NUMBER . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO DOB_PROBE_Y]

(4) YES, YOUTH AVAILABLE-CALL BACK NEEDED FOR RELAY SWITCH ............ [GO TO RELAY]
 

(5) YES, YOUTH IS AVAILABLE BUT NEEDS CURRENT RESPONDENT TO

INTERPRET . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO NEW_RESP_SC]

(6) NO SUCH PERSON AT THIS NUMBER . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO REACH_5]
 

(7) NO, THE PERSON YOU NEED TO SPEAK WITH IS NOT AVAILABLE. ...... [GO TO YOUTH_CONT]

(8) NO, THE PERSON DOES NOT KNOW HOW TO CONTACT THE YOUTH ......... [GO TO REACH_5]
 

(9) NO, YOUTH IS HOSPITALIZED, INSTITUTIONALIZED OR INCARCERATED . . . . . [GO TO TERM_TY]

(10) NO, YOUTH IS INCAPABLE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO DIFF_Q]
 

(11) NO, YOUTH IS SERVING IN THE MILITARY OR LIVING OUTSIDE USA ..... [GO TO WEB_OFFER]

(12) NO, YOUTH IS DECEASED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO F1Q_Y_M]
 

(13) PERSON NEEDS ADDITIONAL INFORMATION .................... [GO TO-M1_NAME_WEB (UE)]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO REACH_5]

DOB_PROBE_Y

The person I would like to speak with was born on [FILL DOB-MMDDYYYY]. Do you know who this might

be?

TRAINING POINT: FAQ ABOUT HOW WE HAVE DOB AND WHY WE NEED TO CONFIRM IT

(1) YES .................................. [GO TO INTRO_R2001 at ‘‘Can you tell me how to find. . .?’’]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO REACH_5]

DIFF_Q What difficulty does [FILL HE/SHE] have that prevents [FILL him/her] from participating?

(1) Hearing difficulty ............ [IF WEB_OFFER=2, GO TO RELAY THEN IF RELAY=3 GO TO PROXY]
 

(2) Speech difficulty . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO WEB_OFFER]
 

(3) Cognitive barrier . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROXY_SCR]
 

(4) Physical barrier . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO WEB_OFFER]
 

(77) DON’T KNOW ......................................................... [GO TO WEB_OFFER]
 

(99) REFUSED	 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROXY_SCR]
 

WEB_OFFER	 We have a Web-based survey available. [FILL: Would you like to /Can they] complete the survey using the Web?

[If entry from PDIFF, then fill with ‘‘Would you like to . . .’’ If entry from DIFF_Q, then fill with ‘‘Can they . . .’’]

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO WEB LETTER]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROXY_SCR]

WEB_LETTER
Series 1, No. 52 [ Page 33

We can e-mail or mail a letter to you with directions on completing the survey via the Web. Which would you

prefer?

(1) E-MAIL WEB LETTER . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO WEB_LETTER_EMAIL]
 

(2) MAIL WEB LETTER . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO WEB_LETTER_MAIL]
 

WEB_LETTER_EMAIL

What is your e-mail address? @ ,

(1) Continue ........................................................ [GO TO WEB_LETTER_EXIT]
 

(99) Refused to give information . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO TERM_TY]
 

WEB_LETTER_MAIL

What is your mailing address?

ADDRESS COLLECTION GRID

WEB_LETTER_EXIT

You will be receiving the letter in the next week or two. It will contain information about our Web survey. It also

contains a toll-free number that you may call at any time with any questions you may have. When you call, please
 

refer to the identification number printed on your letter.
 

[GO TO TERMINATE]
 

PROXY_SCR Is the person who makes the majority of the decisions about the [FILL AGE]-year-old’s health care available?

(1) YES, CURRENTLY ON TELEPHONE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [START PROXY_INT]
 

(2) YES, YOUTH MAKES OWN DECISOIONS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO WEB_OFFER]
 

(3) NO, NOT AVAILABLE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO REACH_PROX]

REACH_PROX

Can you tell me how I could contact the person who makes the majority of the decisions about the [FILL

AGE]-year-old’s health care?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROX_NAME_A]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]

PROX_NAME_A

What is first name of this person who makes these decisions?
 

FIRST
 

PROX_NAME_B

What is their middle name?

MIDDLE

PROX_NAME_ C

What is their last name?

LAST

PROX_NAME_ D

Does this person have a nickname, initials or another name that they may prefer?

(1) YES ................................................................ [GO TO PROX_NAME_E]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO PROX_PH_X1]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO PROX_PH_X1]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO PROX_PH_X1]
 

PROX_NAME_ E

What is the name or initials?
Page 34 [ Series 1, No. 52

NICKNAME/OTHER NAME

PROX_NUM1 Could you please tell me this person’s telephone number?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO PROX_PH_1X]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]

PROX_PH_1X PROXY TELEPHONE NUMBER COLLECTION SCREEN

NNN-NNN-NNNN . . . . . . . . . . . .[GO TO PROX_PH_CONF_X; GO TO PH_CONF WHEN LAST # ENTERED]

PROX_PH_CONF _X

Is that a cellular telephone?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROX_CONFHH]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROX_CONFHH]
 

(77) DON’T KNOW ...................................................... [GO TO PROX_CONFHH]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROX_CONFHH]
 

PROX_CONFHH_X

Is that number a private residence?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROX_PH_LOOP]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROX_PH_LOOP]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROX_PH_LOOP]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROX_PH_LOOP]

PROX_PH_LOOP

Does (FILL PROX_NAME_A OR FILL PROX_NAME_D if given) have another telephone number where

(he/she) can be reached?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO NEXT PROX_PH_X]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 
Series 1, No. 52 [ Page 35

Screener Part 3: COLLECT YOUTH (2007 R) IDENTIFIERS AND LOCATING

INFORMATION

YOUTH_CONT

I’d like to collect a few pieces of information in order to contact this [FILL AGE]- year-old. Could you please tell

me the name of the youth?

IWER INSTRUCTION: IF R NOT COMFORTABLE PROVIDING NAME, ACCEPT INITIALS.

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO YOUTH_NAME_A]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO YOUTH_NAME_D]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO YOUTH_NAME_D]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO YOUTH_NAME_D]

YOUTH_NAME_A

What is the youth’s first name?
 

FIRST
 

YOUTH_NAME_B

What is the youth’s middle name?

MIDDLE

YOUTH_NAME_C

What is the youth’s last name?

LAST

YOUTH_NAME_D

Does the youth have a nickname, initials or another name that they may prefer?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_NAME_E]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_PH1]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_ PH1]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_ PH1]

YOUTH_NAME_E

What is the name or initial?

NICKNAME/OTHER NAME . . . . . . . . . . . . . . . [GO TO YOUTH_ PH1]

YOUTH_PH	 Could you please tell me (FILL YOUTH_NAME_A OR FILL YOUTH_NAME_D if given)’s (FILL BLANK or

second. . .fifth) telephone number?

(1) YES .................................................. [RECORD telephone number(s) IN YPH_X]
 

(2) NO .................................................................. [GO TO YOUTH_EM_X]
 

(77) DON’T KNOW ....................................................... [GO TO YOUTH_EM_X]
 

(99) REFUSED ........................................................... [GO TO YOUTH_EM_X]
 

YPH_X	 YOUTH TELEPHONE NUMBER COLLECTION SCREEN

nnn-nnn-nnnn . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_PH_CONF]

IWER INSTRUCTION:

WHEN IS THE BEST TIME TO CALL [FILL YOUTH_NAME_A]?

IF YES, SELECT APPOINTMENT SCREEN

YOUTH_PH_CONF

Is the telephone number that you’ve just given me a cellular telephone?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YCONFHH]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YCONFHH]
 
Page 36 [ Series 1, No. 52

(77) DON’T KNOW ........................................................... [GO TO YCONFHH]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YCONFHH]

YCONFHH Is that number a private residence?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_PH_LOOP]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_PH_LOOP]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_PH_LOOP]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_PH_LOOP]

YOUTH_PH_LOOP

Does (FILL YOUTH_NAME_A OR FILL YOUTH_NAME_D if given) have another telephone number where

(he/she) can be reached?

(1) YES .............................................................. [GO TO NEXT YOUTH_PH]
 

(2) NO .................................................................. [GO TO YOUTH_EM_X]
 

(77) DON’T KNOW ....................................................... [GO TO YOUTH_EM_X]
 

(99) REFUSED ........................................................... [GO TO YOUTH_EM_X]

YOUTH_EM_X

Could you please tell me (FILL SEX→HIS/HER) (FILL BLANK OR second. . .fifth) electronic mail or e-mail

addresses?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[RECORD E-MAIL ADDRESS ELEMENTS IN YEMAIL_X]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO YOUTH_AD_X]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO YOUTH_AD_X]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO YOUTH_AD_X]

YEMAIL_X E-MAIL ADDRESS COLLECTION SCREEN

@ ,

YOUTH_EM_CONF_X

Is this an e-mail address for personal, business or school use?

(1) PERSONAL . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_EM_LOOP]
 

(2) BUSINESS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_EM_LOOP]
 

(3) SCHOOL USE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_EM_LOOP]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_EM_LOOP]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_EM_LOOP]

YOUTH_EM_LOOP

Does (FILL YOUTH_NAME_A OR FILL YOUTH_NAME_D if given) have another e-mail address where

(he/she) can be reached?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO NEXT YOUTH_EM_X]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO YOUTH_AD_X]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO YOUTH_AD_X]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO YOUTH_AD_X]

YOUTH_AD_X

Could you please tell me (HIS/HER) street address or mailing address [IF YPH_X not equal null then FILL ‘‘in

case we cannot reach them by telephone’’]?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_AD_ST_X]
 

(2) NO ................................................................... [GO TO CONF_INTRO]
 

(77) DON’T KNOW ........................................................ [GO TO CONF_INTRO]
 

(99) REFUSED ............................................................ [GO TO CONF_INTRO]
 
Series 1, No. 52 [ Page 37

YOUTH_AD_ST_X

What is the youth’s street address or mailing address?

YOUTH_ADAPT_X

What is the youth’s apartment number?

APT #

YOUTH_AD_CITY_X

What is the youth’s city and state?

CITY

YOUTH_AD_STATE_X

State Dropdown Menu

YOUTH_AD_ZIP_X

What is the youth’s zip code?

ZIP ....................................................... [GO TO YCONYHH]

YCONYHH_X

Is the youth’s address you just gave me a private residence?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_AD_LOOP]
 

(2) NO ................................................................... [GO TO YOUTH_INST]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_AD_LOOP]
 

(99) REFUSED	 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_AD_LOOP]
 

YOUTH_ INST_X

Can you describe the type of residence?

(1) UNIVERSITY/COLLEGE HOUSING (DORM) . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_AD_LOOP]
 

(2) MILITARY BASE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_AD_LOOP]
 

(3) PRISON . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_AD_LOOP]
 

(4) OTHER INSTITUTION . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_AD_LOOP]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_AD_LOOP]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO YOUTH_AD_LOOP]

YOUTH_AD_LOOP

Does (FILL YOUTH_NAME_A OR FILL YOUTH_NAME_D if given) have another street or mailing address

where (he/she) can be reached?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO NEXT YOUTH_AD_X]
 

(2) NO ................................................................... [GO TO CONF_INTRO]
 

(77) DON’T KNOW ........................................................ [GO TO CONF_INTRO]
 

(99) REFUSED ............................................................ [GO TO CONF_INTRO]

CONF_INTRO I would like to confirm that I have the correct information for the youth that we’ll be contacting.

[IWER INSTRUCTION: CONFIRM ALL NAMES AND SPELLINGS WITH THE RESPONDENT.]

CONF_NAME The name I have for the youth is [FILL YOUTH_NAME_A- YOUTH_NAME_D].

Is this correct?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONFDOB_X]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO YOUTH_NAME_A- YOUTH_NAME_D TO EDIT]
 

CONFDOB	 The [FILL birth date/age] I have for [FILL YOUTH_NAME_A OR FILL YOUTH_NAME_D if given]

is [FILL: BIRTH DATE FROM DOB/ AGE].

(If DOB is not available, confirm age)
Page 38 [ Series 1, No. 52

Is this correct?

(1) YES ................................................................... [GO TO Y_FUTCONT]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO SCR_DOB]

SCR_DOB What is the correct month, day and year of birth of [FILL YOUTH_NAME_A OR FILL

YOUTH_NAME_D if given]?

/ / (mm/dd/yyyy)

Y_FUTCONT	 May we contact you again if we have problems contacting [FILL YOUTH_NAME_A OR FILL

YOUTH_NAME_D if given]?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_NAMECONF_A]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO TERMINATE]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO TERMINATE]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO TERMINATE]

R2001_ NAMECONF_A

What is your name?
 

NAME
 

R2001_ TELEPHONECONF_A

And what is the best telephone number to reach you?

TELEPHONE NUMBER COLLECTION SCREEN

(1) Nnn-nnn-nnnn . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(2) Another Telephone Number
 

[R2001_TELEPHONECONF_XX]
 

IWER INSTRUCTION:
 

WHEN IS THE BEST TIME TO CALL [FILL YOUTH_NAME_A]?
 

IF YES, SELECT APPOINTMENT ICON.
Series 1, No. 52 [ Page 39

Screener Part 4: COLLECT IDENTIFIERS AND LOCATING INFORMATION FOR

2001 OR 2007 R LEADS

PATH TO COLLECT INFORMATION FOR LEAD THAT KNOWS HOW TO CONTACT 2007 RESPONDENT (I.E., YOUTH)

LEAD_REACH_Y

Could you please tell me the name of the person that may know how to contact the [FILL AGE]-year-old?

IWER INSTRUCTION: IF R NOT COMFORTABLE PROVIDING NAME, ACCEPT INITIALS.

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_NAME_A]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_NAME_D]
 

(77) DON’T KNOW ...................................................... [GO TO LEAD_NAME_D]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_NAME_D]
 

LEAD_NAME_A

What is the first name?

FIRST

LEAD_NAME_B

What is the middle name?

MIDDLE

LEAD_NAME_C

What is the last name?

LAST

LEAD_NAME_D

Does the [FILL RELATION] have a nickname, initials or another name that they may prefer?

(1) YES ................................................................ [GO TO LEAD_NAME_E]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD _PH_X]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD _PH_X]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD _PH_X]

LEAD_NAME_E

What is the name or initials?

NICKNAME/OTHER NAME

LEAD_PH_X

Could you please tell me (FILL LEAD _NAME_A OR FILL LEAD _NAME_D if given/else ‘‘this person’’)’s

(FILL BLANK OR second. . .fifth) telephone number?

(1) YES ............................................. [RECORD telephone number(s) IN LEAD_PH_X]
 

(2) NO ................................................................... [GO TO LEAD _EM_X]
 

(77) DON’T KNOW ........................................................ [GO TO LEAD _EM_X]
 

(99) REFUSED ............................................................ [GO TO LEAD _EM_X]

LEAD_PH_11_X

LEAD R TELEPHONE NUMBER COLLECTION SCREEN
 

nnn-nnn-nnnn . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [ GO TO LEAD _PH_CONF]
 

IWER INSTRUCTION: WHEN IS THE BEST TIME TO CALL?
 

IF YES, SELECT APPOINTMENT SCREEN
 

LEAD_PH_CONF_X

Is that a cellular telephone number?
Page 40 [ Series 1, No. 52

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO LEAD _CONFHH]
 

(2 NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO LEAD _CONFHH]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO LEAD _CONFHH]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO LEAD _CONFHH]
 

LEAD_CONFHH_X

Is that number a private residence?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD _PH_LOOP]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD _PH_LOOP]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD _PH_LOOP]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD _PH_LOOP]

LEAD_PH_LOOP_X

Does (FILL LEAD _NAME_A OR FILL LEAD _NAME_D if given) have another telephone number where

(he/she) can be reached?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO NEXT LEAD _PH]
 

(2) NO ................................................................... [GO TO LEAD _EM_X]
 

(77) DON’T KNOW ........................................................ [GO TO LEAD _EM_X]
 

(99) REFUSED ............................................................ [GO TO LEAD _EM_X]
 

LEAD_EM_X Could you please tell me (FILL LEAD R_NAME_A OR FILL LEAD R_NAME_D if given)’s (FILL BLANK OR

second. . .fifth) electronic mail or e-mail addresses?

(1) YES ................................[RECORD E-MAIL ADDRESS ELEMENTS IN LEAD_MAIL_X]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_X]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_X]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_X]

LEAD_EMAIL_X

E-MAIL ADDRESS COLLECTION SCREEN

@ ,

LEAD_EM_ CONF_X

Is this e-mail address for personal, business or school use?

(1) PERSONAL . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_EM_LOOP]
 

(2) BUSINESS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_EM_LOOP]
 

(3) SCHOOL USE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_EM_LOOP]
 

(77) DON’T KNOW ..................................................... [GO TO LEAD_EM_LOOP]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_EM_LOOP]

LEAD_EM_LOOP_X

Does (FILL LEAD _NAME_A OR FILL LEAD _NAME_D if given) have another e-mail address where (he/she)

can be reached?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO NEXT LEAD_EM_X]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_X]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_X]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_X]
 

LEAD_AD_X Could you please tell (FILL LEAD _NAME_A OR FILL LEAD _NAME_D if given)’s [FILL BLANK OR

second. . .fifth] street address or addresses [IF LEADPH_1 through LEADRPH_9 not equal null then FILL] in

case we cannot reach them by telephone?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_ST_X]
 

(2) NO ....................................................................[CONF_INTRO_LEAD]
 

(77) DON’T KNOW .........................................................[CONF_INTRO_LEAD]
 

(99) REFUSED .............................................................[CONF_INTRO_LEAD]
 
Series 1, No. 52 [ Page 41

LEAD_AD_ST_X

What is the street address?

LEAD _AD_APT_X

What is the apartment number?

APT #

LEAD _AD_CITY_X

What is the city and state?

CITY

LEAD _AD_STATE_X

State Dropdown Menu

LEAD _AD_ZIP_X

What is the zip code?

ZIP . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO LEADCONYHH_X]

LEAD CONYHH_X

Is that address a private residence?

(1) YES ............................................................... [GO TO LEAD_AD_LOOP]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_INST]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_LEAD]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_LEAD]
 

LEAD_ INST_X

Can you describe the type of residence?

(1) UNIVERSITY/COLLEGE HOUSING (DORM) ........................... [GO TO LEAD_AD_LOOP]
 

(2) MILITARY BASE ................................................... [GO TO LEAD_AD_LOOP]
 

(3) PRISON . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_LOOP]
 

(4) OTHER INSTITUTION ............................................... [GO TO LEAD_AD_LOOP]
 

(77) DON’T KNOW ..................................................... [GO TO LEAD_AD_LOOP]
 

(99) REFUSED ......................................................... [GO TO LEAD_AD_LOOP]

LEAD_AD_LOOP

Does (FILL LEAD R_NAME_A OR FILL LEAD R_NAME_D if given) have another address where (he/she) can

receive mail?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO NEXT LEAD_AD_X]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_LEAD]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_LEAD]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_LEAD]
 

CONF_INTRO_LEAD

I would like to confirm that I have the correct information for the person that we’ll be contacting.

[INTERVIEWER: CONFIRM ALL NAMES AND SPELLINGS WITH THE RESPONDENT.]

CONF_NAME_LEAD

The name I have for this person is [FILL NAME OF FROM LEADNAME_A- LEAD_NAME_D].

Is this correct?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_FUTCONT]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_CONT AND EDIT]

LEAD_FUTCONT

May we contact you again if we have problems contacting this person who may have completed the interview?
Page 42 [ Series 1, No. 52

(1) YES ........................................................ [GO TO FUTCONT_LEAD_NAME]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

FUTCONT_ LEAD_NAME

What is your name?

NAME

[GO TO PH_CONF]

PATH TO COLLECT INFORMATION FOR LEAD THAT KNOWS HOW TO CONTACT 2001 RESPONDENT

LEAD_REACH_01

Could you please tell me the name of the person that may know how to contact the [FILL AGE]-year-old’s [FILL
 

RELATION]?
 

IWER INSTRUCTION: IF R NOT COMFORTABLE PROVIDING NAME, ACCEPT INITIALS.
 

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_NAME_A_01]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_NAME_D_01]
 

(77) DON’T KNOW ................................................... [GO TO LEAD_NAME_D_01]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_NAME_D_01]
 

LEAD_NAME_A_01

What is the first name?

FIRST

LEAD_NAME_B_01

What is the middle name?

MIDDLE

LEAD_NAME_C_01

What is the last name?

LAST

LEAD_NAME_D_01

Is there a nickname, initials or another name that they may prefer?

NICKNAME/OTHER NAME

LEAD_PH_01

Could you please tell me (FILL LEAD _NAME_A_01 OR FILL LEAD _NAME_D_01 if given)’s (FILL BLANK

OR second. . .fifth) telephone number?

(1) YES .......................................... [RECORD telephone number(s) IN LEAD_PH_X_01]
 

(2) NO ................................................................ [GO TO LEAD _EM_X_01]
 

(77) DON’T KNOW ..................................................... [GO TO LEAD _EM_X_01]
 

(99) REFUSED ......................................................... [GO TO LEAD _EM_X_01]
 

LEAD_PH_X_01

LEAD R TELEPHONE NUMBER COLLECTION SCREEN

nnn-nnn-nnnn . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [ GO TO LEAD _PH_CONF_01]

IWER INSTRUCTION: WHEN IS THE BEST TIME TO CALL [FILL YOUTH_NAME_A]?

IF YES, CREATE AN APPOINTMENT.

LEADR_PH_CONF_01_X

Is that a cellular telephone number?
Series 1, No. 52 [ Page 43

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO LEAD _CONFHH_01]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO LEAD _CONFHH_01]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO LEAD _CONFHH_01]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO LEAD _CONFHH_01]
 

LEADCONFHH_01_X

Is that number a private residence?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD _PH_LOOP_01]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD _PH_LOOP_01]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD _PH_LOOP_01]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD _PH_LOOP_01]

LEAD_PH_LOOP_01_X

Does (FILL LEAD R_NAME_A_01 OR FILL LEAD R_NAME_D_01 if given) have another telephone number

where (he/she) can be reached?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO NEXT LEAD R_PH_01_X]
 

(2) NO ................................................................ [GO TO LEAD _EM_X_01]
 

(77) DON’T KNOW ..................................................... [GO TO LEAD _EM_X_01]
 

(99) REFUSED ......................................................... [GO TO LEAD _EM_X_01]

LEAD_EM_ 01_X

Could you please tell (FILL LEAD_NAME_A_01 OR FILL LEAD_NAME_D_01 if given)’s (FILL BLANK OR

second. . .fifth) electronic mail or e-mail addresses?

(1) YES ..........................[RECORD E-MAIL ADDRESS ELEMENTS IN LEAD_MAIL_01_X_01]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_X_01]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_X_01]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_X_01]

LEAD_EMAIL_01_X

E-MAIL ADDRESS COLLECTION SCREEN

@ ,

LEAD_EM_ CONF_X

Is this e-mail address for personal, business or school use?

(1) PERSONAL . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_EM_LOOP_01]
 

(2) BUSINESS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_EM_LOOP_01]
 

(3) SCHOOL USE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_EM_LOOP_01]
 

(77) DON’T KNOW .................................................. [GO TO LEAD_EM_LOOP_01]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_EM_LOOP_01]

LEAD_EM_LOOP_01

Does (FILL LEAD _NAME_A OR FILL LEAD _NAME_D if given) have another e-mail address where (he/she)

can be reached?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO NEXT LEAD_EM_X_01]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_X_01]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_X_01]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_X_01]
 

LEAD_AD_X_01

Could you please tell (FILL LEAD _NAME_A OR FILL LEAD _NAME_D if given)’s [FILL BLANK OR

second. . .fifth] street address or addresses [IF LEAD PH_X entered then FILL ‘‘in case we cannot reach them by

telephone’’]?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO EAD_AD_ST_X_01]
 

(2) NO .................................................................[CONF_INTRO_LEAD_01]
 
Page 44 [ Series 1, No. 52

(77) DON’T KNOW ......................................................[CONF_INTRO_LEAD_01]
 

(99) REFUSED ..........................................................[CONF_INTRO_LEAD_01]
 

LEAD_AD_ST_01_X

What is the street address?

LEAD _AD_APT_01_X

What is the apartment number?

APT #

LEAD _AD_CITY_01_X

What is the city and state?

CITY

LEAD _AD_STATE_01_X

State Dropdown Menu

LEAD _AD_ZIP_01_X

What is the zip code?

ZIP . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO LEADCONYHH_01_X]

LEAD CONYHH_01_X

Is that address a private residence?

(1) YES ............................................................ [GO TO LEAD_AD_LOOP_01]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_INST_01]
 

(77) DON’T KNOW .............................................. [GO TO [CONF_INTRO_LEAD_01]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_LEAD_01]
 

LEAD_ INST_01_X

Can you describe the type of residence?

(1) UNIVERSITY/COLLEGE HOUSING (DORM) ........................ [GO TO LEAD_AD_LOOP_01]
 

(2) MILITARY BASE ................................................ [GO TO LEAD_AD_LOOP_01]
 

(3) PRISON . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_AD_LOOP_01]
 

(4) OTHER INSTITUTION ............................................ [GO TO LEAD_AD_LOOP_01]
 

(77) DON’T KNOW .................................................. [GO TO LEAD_AD_LOOP_01]
 

(99) REFUSED ...................................................... [GO TO LEAD_AD_LOOP_01]

LEAD_AD_LOOP_01_X

Does (FILL LEAD R_NAME_A OR FILL LEAD R_NAME_D if given) have another address where (he/she) can

receive mail?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO NEXT LEAD_AD_X_01]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_LEAD_01]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_LEAD_01]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_INTRO_LEAD_01]

CONF_INTRO_LEAD_01

I would like to confirm that I have the correct information for the person that we’ll be
 

contacting.
 

[INTERVIEWER: CONFIRM ALL NAMES AND SPELLINGS WITH THE RESPONDENT.]
 

CONF_NAME_LEAD_01

The name I have for this person is [FILL NAME OF FROM LEADNAME_A_01- LEAD_NAME_D_01].

Is this correct?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEAD_FUTCONT_01]
 
Series 1, No. 52 [ Page 45

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO LEADNAME_A_01 to D_01 AND CORRECT]

LEAD_FUTCONT_01

May we contact you again if we have problems contacting this person who may have completed the 2001

interview?

(1) YES ..................................................... [GO TO FUTCONT_LEAD_NAME_01]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

FUTCONT_ LEAD_NAME_01

What is your name?

NAME . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]

FUTCONT_LEAD_NUM_01

And what is the best telephone number to reach you?

TELEPHONE NUMBER COLLECTION SCREEN

Nnn-nnn-nnnn

TERM_BRIEF Thank you for your time (on behalf of the Centers for Disease Control).

TERMINATE Those are all the questions I have. I’d like to thank you on behalf of the Centers for Disease Control and

Prevention for the time and effort you’ve spent answering these questions. If you would like more information

about the Survey of Adult Transition and Health, please call the study’s toll-free number, 1–866–900–9601. If you

have questions about your rights as a study participant, you may call 1–800–223–8118, toll-free, and leave a

message asking to speak to the Chairperson of the Research Ethics Review Board.
Page 46 [ Series 1, No. 52

CATI QUESTIONNAIRE INTRODUCTION
 

NEW_RESP	 Hello, my name is . I’m calling on behalf of the Centers for Disease Control and

Prevention.

[If youth name available, ‘‘May I please speak to [FILL YOUTH NAME_A-YOUTH_NAME_D]?’’

(1) Yes, youth comes to telephone . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO NEW_RESP_SC]
 

(2) No, youth unavailable . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO REACH_SC]
 

REACH_SC	 When would be a good time to call back to reach [FILL YOUTHNAME_A-YOUTH_NAME_D]?

CREATE AN APPOINTMENT

NEW_RESP_SC

Hello, my name is . I’m calling on behalf of the Centers for Disease Control and

Prevention. We are doing a nationwide survey about the health of young people in your age group, their health

status and health care, and transition into adulthood. In [FILL INTDATE], we spoke to someone in your household

about health care. We would now like to ask you about changes that may have occurred in your health in the past

few years.

(1) CONTINUE .............................................................. [GO TO SL_INTRO]
 

(2) PROXY NEEDED ............................................................. [GO TO PDIFF]

PDIFF What difficulty do you have that prevents you from participating for yourself?

(1) Hearing difficulty . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROXY_SCR/WEB_OFFER]
 

(2) Speech difficulty . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROXY_SCR/WEB_OFFER]
 

(3) Cognitive barrier . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROXY_SCR]
 

(4) Physical barrier . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROXY_SCR/WEB_OFFER]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROXY_SCR/WEB_OFFER]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROXY_SCR]
 

RELAY	 Thank you for this information. I can continue the RELAY interview in a few minutes, or schedule a time to call

you back. Which would be better for you?

(1) CONTINUE NOW USING RELAY . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO RELAYNOW]
 

(2) SCHEDULE CALLBACK WITH RELAY . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO RELAYCBK]
 

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO RELAYNOW]

RELAYNOW I have to call into the RELAY machine to continue this interview. I will call you back in less than 5 minutes at

[FILL SAMPLED TELEPHONE 1–866–900–9601]. Please stay by your RELAY machine for the next 5 minutes.

Thank you, and good bye.

RELAYCBK. When would be a good time to call back to reach you using RELAY?

SELECT APPOINTMENT ICON

PROXY_SCR Is the person who makes the majority of the decisions about the [FILL AGE]-year-old’s health care available?

(1) YES, CURRENTLY ON TELEPHONE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [START PROXY INTERVIEW]
 

(2) YES, YOUTH MAKES OWN DECISION . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PROXY_INT]
 

(3) NO, NOT AVAILABLE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO REACH_PROX ]
 

PROXY_INT	 I understand that you are the person who makes the majority of the decisions about the [FILL NAME OR

DOB/AGE]. The CDC is interested in either talking with (FILL him/her) for about 15 minutes, or having him/her

complete the survey on the Internet. We understand that he/she is unable to do this. Is this correct? [PROBE TO

DETERMINE IF CASE IS ELIGIBLE FOR PROXY COMPLETION AND CODE REASON:]

(1) Yes, hearing difficulty . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [CONTINUE]
 

(2) Yes, speech difficulty ............................................................. [CONTINUE]
 

(3) Yes, cognitive barrier ............................................................. [CONTINUE]
 

(4) Yes, physical barrier .............................................................. [CONTINUE]
 

(5) No, youth is able to do the interview and is currently available . . [TERMINATE AND CONTACT YOUTH R]

(6) No, youth is able to do the interview in separate household .................... [GO TO YOUTH_CONT]
 
Series 1, No. 52 [ Page 47

Because [FILL he/she] cannot be interviewed and you are knowledgeable about [FILL: his/her] health care, the

CDC would like to interview you in [FILL: his/her] place. Please keep in mind that these questions are written to

be asked of [FILL: NAME] directly, so please answer the questions as if they were being asked of [FILL:

him/her].

SL_INTRO	 Before we continue, I’d like you to know that taking part in this research is voluntary. You may choose not to

answer any question you do not wish to answer, or stop at any time without penalty. Your answers will be used

for statistical purposes, and will be linked to your parent or guardian from several years ago. We are required by

the Public Health Service Act to keep your answers strictly private. I can give you more information on this and

other federal laws if you wish. They state that your answers will be used only for statistical research. The survey

will take about 15 minutes. In appreciation, you will receive $20. (IF CALLING KNOWN CELLULAR

TELEPHONE NUMBER: You will also receive an additional $5 to defer your costs for doing the interview on

your cellular telephone.) I’d like to continue unless you have any questions. [SKIP IF PDIFF=1:] In order to

review my work, my supervisor may record and listen as I ask the questions. I’d like to continue now unless you

have any questions.

(1) CONTINUE, RECORDING ACCEPTABLE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CONF_DOB_Y]
 

(2) CONTINUE, DO NOT RECORD ............... [DISABLE RECODRDING AND GO TO ONF_DOB_Y]
 

(3) PROXY NEEDED ............................................................. [GO TO PDIFF] 
 

HELP SCREEN (SL_INTRO IF NEEDED):
 

The Public Health Service Act is Volume 42 of the U.S. Code, Section 242k. The collection of information in this
 

survey is authorized by Section 306 of this Act. The confidentiality of your responses is assured by Section 308d

of this Act and by the Confidential Information Protection and Statistical Efficiency Act.

CONFDOB_Y Before we begin, I’d like to confirm your date of birth. The birth date I have for you is [FILL: BIRTH DATE

FROM 2001 DOB].

Is this correct?

(1) YES ......................................................................... [GO TO F2Q11]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO NEWDOB]

NEWDOB_MDY

What is the correct month, day and year of birth?

/ / (mm/dd/yyyy)
 

GO TO SECTION 2: HEALTH AND FUNCTIONAL STATUS (F2Q11).
 
Page 48 [ Series 1, No. 52

WEB QUESTIONNAIRE INTRODUCTION
 

The Centers for Disease Control and Prevention (CDC) is doing a nationwide survey about the health of young adults, their health

status and health care, and transition into adulthood. In 2001, we spoke to someone in your household about health care. We

would now like to ask you about changes that may have occurred in your health in the past few years.

Taking part in this survey is voluntary. It will take about 15 minutes. In appreciation, you will receive $20. You may choose not to

answer any question you don’t wish to answer—simply select the ‘‘Refused’’ option. You may also choose to stop the survey at

any time, or stop now and continue it at a later time. You will be able to restart the survey where you left off.

We are required by the Public Health Service Act to keep your answers strictly private. Your answers will be used only for

statistical purposes and will be linked to those of your parent or guardian from several years ago. By law, we will take all possible

steps to protect your privacy and are required to use your answers only for statistical research. You can view a description of these

laws by clicking here.

If you have any questions about this study, please call the study’s toll-free number, 866–900–9601, or send an e-mail to

6414@norc.org.

HOW TO NAVIGATE THIS WEB SURVEY: You will use the computer mouse to select your answer to most questions. For some

questions you might need to type in your answer. You must choose an answer in order to proceed to the next question.

Click the ‘‘Next’’ button to continue to the next question. To return to a question already answered, click the ‘‘Previous’’ button.

You may choose not to answer any questions you don’t wish to answer. Simply select the Refused option. You may also stop the

survey at any time without penalty, or continue it at a later time.

If you would like to stop the survey and continue at a later time, simply click on the ‘‘Stop’’ button.

To begin the survey, click on the ‘‘Next’’ button shown below.

CONFDOB_WEB

1. Please confirm your date of birth. The birth date we have for you is [FILL: BIRTH DATE FROM 2001 DOB].

Is this correct?

(1) YES ......................................................................... [GO TO F2Q11]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO NEWDOB_X]

NEWDOB_WEB_MDY What is the correct month, day and year of birth?

/ / (mm/dd/yyyy)
 

GO TO SECTION 2: HEALTH AND FUNCTIONAL STATUS (F2Q11).
 
Series 1, No. 52 [ Page 49

SECTION 1: HEALTH AND FUNCTIONAL STATUS
 

Subdomain 1. General health status

F2Q11 In general, how would you describe your health? Would you say your health is excellent, very good, good, fair, or

poor?

(1) Excellent

(2) Very good

(3) Good

(4) Fair

(5) Poor

(7) DON’T KNOW

(9) REFUSED

F2Q12 About 6 years ago, your parent or guardian told us about your health. Compared with 6 years ago, would you say

your health now is better, worse, or about the same?

(1) Better

(2) Worse

(3) About the same

(7) DON’T KNOW

(9) REFUSED
 

F2Q13 Do you consider yourself to have any kind of disability?
 

(1) Yes
 

(2) No
 

(7) DON’T KNOW
 

(9) REFUSED
 

F2Q14 A person with special health care needs is someone who needs special health care services because of a medical,

mental health, or other health condition. People with special health care needs might need medicine, therapy, or

specialty care on a regular basis—stuff other people don’t typically need or only need once in a while. Do you

consider yourself to have a special health care need?

(1) Yes

(2) No

(7) DON’T KNOW

(9) REFUSED
Page 50 [ Series 1, No. 52

Subdomain 2. Activity limitations—Daily living

F2Q21 Because of a physical, mental, or emotional problem, do you need the help of other persons with PERSONAL

CARE NEEDS, such as eating, bathing, dressing, or getting around inside your home?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F2Q22 Because of a physical, mental, or emotional problem, do you need the help of other persons in handling

ROUTINE NEEDS, such as everyday household chores, doing necessary business, shopping, or getting around for

other purposes?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F2Q23 Does a physical, mental, or emotional problem interfere with your ability to participate in social, religious, or

recreation activities like sports, clubs, parties, or church?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED
Subdomain 3. Activity limitations—Work

F2Q30 What were you doing most of the past 12 months: Working at a job or business, looking for work, taking care of

your house or family, going to school, or something else?

(1) Working at a job or business . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO F2Q32]
 

(2) Looking for work . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO F2Q31]
 

(3) Taking care of house or family . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO F2Q31]
 

(4) Going to school ............................... . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO F2Q31]
 

(5) Something else

(7) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO F2Q31]
 

(9) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO F2Q31]
 

F2Q30A What were you doing most of the past 12 months?
 

TEXT FIELD:
 

F2Q31 Did you have a job or business at any time in the past 12 months?

(1) YES

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q37]
 

(7) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q37]
 

(9) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q37]
 

F2Q32 In the past 12 months, how often has your health affected your ability to work at a job or business? Would you

say:

(1) Never . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q34]
 

(2) Sometimes

(3) Usually

(4) Always

(7) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q34]
 

(9) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q34]

F2Q33 Does your health affect your ability to work a great deal, some, or very little?

(1) A great deal

(2) Some

(3) Very little

(7) DON’T KNOW

(9) REFUSED

F2Q34 Because of your health, did you need any services, accommodations, or other assistance to help you do your job

better?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q35]
 

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]
 

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]
 

(9) REFUSED ...................................................... [SKIP TO NEXT SUBDOMAIN]
 

F2Q35 Did your job(s) or business(es) provide any services, accommodations, or other assistance to help you do your best

there?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q36]
 

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]
 

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]
 

(9) REFUSED ...................................................... [SKIP TO NEXT SUBDOMAIN]

F2Q36 Did you ask or apply for any services, accommodations, or other assistance from your job or business?

(1) YES ........................................................... [SKIP TO NEXT SUBDOMAIN]
 

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]
 

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]
 

(9) REFUSED ...................................................... [SKIP TO NEXT SUBDOMAIN]
 

Series 1, No. 52 [ Page 51
Page 52 [ Series 1, No. 52

F2Q37 Did you want to have a job or business at any time in the past 12 months?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F2Q38 Do you have plans to have a job or business in the next 12 months?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F2Q39 Does your health affect your ability to have a job or business?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED
Series 1, No. 52 [ Page 53

Subdomain 4. Activity limitations—School

IF F2Q30 = 4 (MAIN ACTIVITY IS SCHOOL), SKIP TO F2Q42.

F2Q41 In the past 12 months, did you attend any type of school?

(1) YES

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q47]
 

(7) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q47]
 

(9) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q47]

F2Q42 In the past 12 months, how often has your health affected your ability to attend school? Would you say:

(1) Never . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q44]
 

(2) Sometimes

(3) Usually

(4) Always

(7) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q44]
 

(9) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q44]

F2Q43 Does your health affect your ability to attend school a great deal, some, or very little?

(1) A great deal

(2) Some
 

(3) Very little
 

(7) DON’T KNOW

(9) REFUSED

F2Q44	 Because of your health, did you need any services, accommodations, or other assistance to help you attend school

or do your best there?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q45]
 

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]
 

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]
 

(9) REFUSED ...................................................... [SKIP TO NEXT SUBDOMAIN]
 

F2Q45	 Did the school(s) you attended provide any services, accommodations, or other assistance to help you do your best

there?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q46]
 

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]
 

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]
 

(9) REFUSED ...................................................... [SKIP TO NEXT SUBDOMAIN]

F2Q46 Did you ask or apply for any services, accommodations, or other assistance from your school?

(1) YES ........................................................... [SKIP TO NEXT SUBDOMAIN]
 

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]
 

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]
 

(9) REFUSED ...................................................... [SKIP TO NEXT SUBDOMAIN]

F2Q47 Did you want to attend any type of school in the past 12 months?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F2Q48 Do you have plans to enroll in any type of school in the next 12 months?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED
Page 54 [ Series 1, No. 52

F2Q49 Does your health affect your ability to attend school or complete coursework?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED
Series 1, No. 52 [ Page 55

Subdomain 5. Activity limitations—Taking care of house or family

IF F2Q30 = 3 (MAIN ACTIVITY IS TAKING CARE OF HOUSE OR FAMILY), ASK F2Q52. IF F2Q30 = (1,2,4,5,7,9), SKIP

TO NEXT SUBDOMAIN.

F2Q52	 In the past 12 months, how often has your health affected your ability to take care of your house or family?

Would you say:

(1) Never . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q54]
 

(2) Sometimes

(3) Usually

(4) Always

(7) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q54]
 

(9) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q54]

F2Q53 Does your health affect your ability to take care of your house or family a great deal, some, or very little?

(1) A great deal

(2) Some

(3) Very little

(7) DON’T KNOW

(9) REFUSED

F2Q54	 Because of your health, did you need any services, accommodations, or other assistance to help you take care of

your house or family?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q55]
 

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]
 

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]
 

(9) REFUSED ...................................................... [SKIP TO NEXT SUBDOMAIN]

F2Q55 Did you receive any services, accommodations, or other assistance to help you take care of your house or family?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q56]
 

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]
 

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]
 

(9) REFUSED	 ...................................................... [SKIP TO NEXT SUBDOMAIN]
 

F2Q56	 Did you ask or apply for any services, accommodations, or other assistance to help you take care of your house or

family?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED
Page 56 [ Series 1, No. 52

SECTION 2: MEDICAL HOME

Subdomain 1. Usual place for care

F3Q01	 Is there a place that you USUALLY go when you are sick or you need advice about your health?

(01) YES

(02) THERE IS NO PLACE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q03]
 

(03) THERE IS MORE THAN ONE PLACE

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q03]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q03]
 

F3Q02	 When you are sick or you need advice about your health, what kind of place do you go to most often? Is it a

doctor’s office, emergency room, hospital outpatient department, clinic, or some other place?

(01) Doctor’s office

(02) Hospital emergency room

(03) Hospital outpatient department

(04) Clinic or health center

(08) Some other place

(09) DOES NOT GO TO ONE PLACE MOST OFTEN

(77) DON’T KNOW

(99) REFUSED

F3Q03	 Is there a place that you USUALLY go when you need routine preventive care, such as a physical examination or

checkup?

(01) YES

(02) THERE IS NO PLACE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q05]
 

(03) THERE IS MORE THAN ONE PLACE

(77) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q05]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q05]
 

F3Q04	 When you need routine preventive care, what kind of place do you go to most often? Is it a doctor’s office,

emergency room, hospital outpatient department, clinic, or some other place?

(01) Doctor’s office

(02) Hospital emergency room

(03) Hospital outpatient department

(04) Clinic or health center

(08) Some other place

(09) DOES NOT GO TO ONE PLACE MOST OFTEN

(77) DON’T KNOW

(99) REFUSED

F3Q05	 A personal doctor or nurse is a health professional who knows you well and is familiar with your health history.

This can be a general doctor, a specialist doctor, a nurse practitioner, or a physician’s assistant. Do you have one

or more persons you think of as your personal doctor or nurse?

(01) Yes, one person

(02) Yes, more than one person

(03) No

(77) DON’T KNOW

(99) Refused
Series 1, No. 52 [ Page 57

Subdomain 2. Continuous screening

F3Q21 During the past 12 months, how many times have you seen a doctor, nurse, or other health care provider for

preventive medical care such as a physical exam or checkup?

TIMES

(777) DON’T KNOW

(999) REFUSED

F3Q22 During the past 12 months, how many times did you see a dentist for preventive dental care, such as checkups and

dental cleanings?

TIMES

(777) DON’T KNOW

(999) REFUSED

IF F3Q21 ≥ 1 OR F3Q22 ≥ 1 THEN SKIP TO F3Q31. ELSE IF F3Q21 = (000,777,999) AND F3Q22 = (000,777,999) THEN

ASK F3Q23.

F3Q23	 During the past 12 months, did you see a doctor, nurse, or other health care provider for any kind of medical

care?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED
Page 58 [ Series 1, No. 52

Subdomain 3. Foregone or delayed care

F3Q31 People often delay or do not get needed health care. Examples of needed health care include medical care as well

as other types of care such as dental care, mental health services, and special types of therapies. In the past 12

months, have you delayed or gone without needed health care?

(1) YES

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]

(9) REFUSED ...................................................... [SKIP TO NEXT SUBDOMAIN]

F3Q32_INT There are many reasons people delay or do not get needed health care. Did you delay or did not get health care

for yourself for any of the following reasons?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F3Q32A You couldn’t get through to the health care provider’s office on the telephone.

F3Q32B You couldn’t get an appointment soon enough.

F3Q32C The clinic or doctor’s office was not open when you could get there.

F3Q32D Transportation was a problem.

F3Q32E You didn’t have enough money to pay the health care provider.

F3Q32F The type of care you needed was not available in your area.

F3Q32G The health care provider did not have the skills you needed.

F3Q32H The type of care was not covered by your health plan.

F3Q32I You could not get approval from your health plan or doctor.

F3Q32J Once you get there, you have to wait too long to see the health care provider.

F3Q32K You have language, communication, or cultural problems with the health care provider.

F3Q32L Going to appointments conflicts with other responsibilities at home, school, or at work.
Series 1, No. 52 [ Page 59

Subdomain 4. Care coordination

F3Q40 Does anyone help you arrange or coordinate your care among the different doctors or services that you use?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F3Q41 During the past 12 months, have you felt that you could have used extra help arranging or coordinating your care

among the different doctors or services?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F3Q42 During the past 12 months, did you need a referral to see any doctors or receive any services?

(1) YES

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]

(9) REFUSED ...................................................... [SKIP TO NEXT SUBDOMAIN]

F3Q43 Was getting referrals a big problem, a small problem, or not a problem?

(1) Big problem

(2) Small problem

(3) Not a problem

(7) DON’T KNOW

(9) REFUSED
Page 60 [ Series 1, No. 52

Subdomain 5. Person-centered care

IF F3Q23 = 2 (NO DOCTOR VISITS IN PAST YEAR), SKIP TO NEXT SUBDOMAIN.

F3Q51	 During the past 12 months, how often did your doctors and other health care providers spend enough time with

you? Would you say never, sometimes, usually, or always?

(1) Never

(2) Sometimes

(3) Usually

(4) Always

(7) DON’T KNOW

(9) REFUSED

F3Q52	 During the past 12 months, how often did your doctors and other health care providers listen carefully to you?

Would you say never, sometimes, usually, or always?

(1) Never

(2) Sometimes

(3) Usually

(4) Always

(7) DON’T KNOW

(9) REFUSED

F3Q53	 How often are your doctors and other health care providers sensitive to your values and customs? Would you say

never, sometimes, usually, or always?

(1) Never

(2) Sometimes

(3) Usually

(4) Always

(7) DON’T KNOW

(9) REFUSED

F3Q54	 Information about your health or health care can include things such as the causes of any health problems, how to

care for yourself now, and what changes to expect in the future. In the past 12 months, how often did you get the

specific information you needed from your doctors and other health care providers? Would you say never,

sometimes, usually, or always?

(1) Never

(2) Sometimes

(3) Usually

(4) Always

(7) DON’T KNOW

(9) REFUSED

F3Q55	 During the past 12 months, how often did your doctors or other health care providers help you feel like a partner

in your care? Would you say never, sometimes, usually, or always?

(1) Never

(2) Sometimes

(3) Usually

(4) Always

(7) DON’T KNOW

(9) REFUSED
Series 1, No. 52 [ Page 61

F3Q56	 During the past 12 months, how often did your doctors or other health care providers encourage you to take

responsibility for your health care needs, such as taking medication, understanding your health, or following

medical advice? Would you say never, sometimes, usually, or always?

(1) Never

(2) Sometimes

(3) Usually

(4) Always

(7) DON’T KNOW

(9) REFUSED

F3Q57	 During the past 12 months, how often did your doctors or other health care providers talk directly to you and

encourage you to ask questions? Would you say never, sometimes, usually, or always?

(1) Never

(2) Sometimes

(3) Usually

(4) Always

(7) DON’T KNOW

(9) REFUSED
Page 62 [ Series 1, No. 52

Section 3: TRANSITION SERVICES RELATED TO HEALTH

F4Q01 Have your doctors or other health care providers talked with you about how your health care needs might change

as you got older?

(1) YES

(2) NO ........................................................................... [SKIP TO Q03]

(7) DON’T KNOW ................................................................. [SKIP TO Q03]

(9) REFUSED ..................................................................... [SKIP TO Q03]

F4Q02 Was a plan for addressing these changing needs developed with your doctors or other health care providers?

(1) YES .......................................................................... [SKIP TO Q04]

(2) NO ........................................................................... [SKIP TO Q04]

(7) DON’T KNOW ................................................................. [SKIP TO Q04]

(9) REFUSED ..................................................................... [SKIP TO Q04]

F4Q03 Would a discussion about your health care needs have been helpful to you?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F4Q04 Do any of your doctors or other health care providers treat only children, teenagers, or young adults?

(1) YES

(2) NO ........................................................................... [SKIP TO Q07]

(7) DON’T KNOW ................................................................. [SKIP TO Q07]

(9) REFUSED ..................................................................... [SKIP TO Q07]

F4Q05 Have they talked with you about eventually seeing doctors or other health care providers who treat adults?

(1) YES .......................................................................... [SKIP TO Q07]

(2) NO

(7) DON’T KNOW

(9) REFUSED

F4Q06 Would a discussion about doctors who treat adults have been helpful to you?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F4Q07 Eligibility for health insurance often changes as children reach adulthood. Has anyone discussed with you how to

obtain or keep some type of health insurance coverage?

(1) YES .......................................................................... [SKIP TO Q09]

(2) NO

(7) DON’T KNOW

(9) REFUSED

F4Q08 Would a discussion about health insurance have been helpful to you?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F4Q09 Have your doctors or other health care providers helped you connect with other youth or adult mentors who could

provide you with social, emotional, or career support?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED
Series 1, No. 52 [ Page 63

Section 4: COMMUNITY-BASED SERVICES

F5Q01 Most of the previous questions have been about medical services provided by your doctors. There are other types

of services people may need or use because of their health. These services may be educational, vocational, or

rehabilitation services, or community programs such as housing services, social services, or recreational services.

Thinking about your health needs and the health-related services that you need, have you had any difficulties

trying to use any services during the past 12 months?

(1) YES

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]

(9) REFUSED ...................................................... [SKIP TO NEXT SUBDOMAIN]

F5Q02 There are many reasons why people may have difficulty trying to use these services. Did you have difficulty

trying to use these services for any of the following reasons?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F5Q02_A You could not get the information you needed.

F5Q02_B There was too much paperwork required.

F5Q02_C You didn’t have enough money to pay for the services.

F5Q02_D Transportation was a problem.

F5Q02_E There were long waiting lists.

F5Q02_F There were problems in communication between service providers.

F5Q02_G You had language, communication, or cultural problems with the service providers.

F5Q02_H You could not find service providers who had the skills you needed.

F5Q02_I The types of services you needed were not available in your area.

F5Q02_J The types of services you needed were available but you were not eligible.

F5Q02_K The types of services you needed were available but you had used up all eligible benefits.

F5Q02_L You didn’t have the time to figure it all out.
Page 64 [ Series 1, No. 52

Section 5: HEALTH INSURANCE COVERAGE

Subdomain 1. Current coverage and past-year coverage

F6Q01_INT	 The next questions are about health insurance.

F6Q01	 Do you have any kind of health care coverage, including health insurance, prepaid plans such as HMOs, or

government plans such as Medicaid?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q02]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q04]
 

(7) DON’T KNOW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q02]
 

(9) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q02]
 

F6Q02	 Are you insured by Medicaid, the State Children’s Health Insurance Program (S-CHIP), or any other insurance

program for people with low income or disabilities?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

IF Q01 IN (7, 9) AND Q02 IN (2, 7, 9) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q04]

ELSE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q03]

F6Q03 During the past 12 months, was there any time when you were not covered by ANY health insurance?

(1) YES ........................................................... [SKIP TO NEXT SUBDOMAIN]
 

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]
 

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]
 

(9) REFUSED ...................................................... [SKIP TO NEXT SUBDOMAIN]

F6Q04 During the past 12 months, have you had health care coverage?

(1) YES ........................................................... [SKIP TO NEXT SUBDOMAIN]
 

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]
 

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]
 

(9) REFUSED ...................................................... [SKIP TO NEXT SUBDOMAIN]
 
Subdomain 2. Adequacy of health insurance

F6Q20 The next questions are about your health insurance or health care plans. Does your health insurance offer benefits

or cover services that meet your needs? Would you say:

(1) Never

(2) Sometimes

(3) Usually

(4) Always

(7) DON’T KNOW

(9) REFUSED
 

F6Q22 Does your health insurance allow you to see the health care providers you need? Would you say:
 

(1) Never
 

(2) Sometimes
 

(3) Usually
 

(4) Always
 

(7) DON’T KNOW
 

(9) REFUSED
 

F6Q21A Not including health insurance premiums or costs that are covered by insurance, do you pay any money for your

health care? Include out-of-pocket payments for all types of health-related needs such as co-payments, dental or

vision care, medications, and any kind of therapy.

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [SKIP TO Q21B]
 

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]
 

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]
 

(9) REFUSED ...................................................... [SKIP TO NEXT SUBDOMAIN]

F6Q21B How often are these costs reasonable? Would you say:

(1) Never

(2) Sometimes

(3) Usually

(4) Always

(7) DON’T KNOW

(9) REFUSED

Series 1, No. 52 [ Page 65
Page 66 [ Series 1, No. 52

Section 6: TRANSITION SERVICES RELATED TO SCHOOL

F7_INTRO Next, I would like to ask you some questions about your education.

F7Q01 During the past 6 years, did you receive any vocational or career training to help you prepare for a job?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F7Q02 What is the highest grade or year of school you have completed?

(01) 8th GRADE OR LESS

(02) 9th–12th GRADE NO DIPLOMA

(03) HIGH SCHOOL GRADUATE OR GED COMPLETED

(04) COMPLETED A VOCATIONAL, TRADE, OR BUSINESS SCHOOL PROGRAM

(05) SOME COLLEGE CREDIT BUT NO DEGREE

(06) ASSOCIATE DEGREE (AA, AS)

(07) BACHELOR’S DEGREE (BA, BS, AB)

(08) MASTER’S DEGREE (MA, MS, MSW, MBA)

(09) DOCTORATE (PhD, EdD) or PROFESSIONAL DEGREE (MD, DDS, DVM, JD)

(77) DON’T KNOW

(99) REFUSED

F7Q03 Did you ever meet with adults at school or somewhere else to set goals for what you would do after high school

and make a plan for how to achieve them? Sometimes this is called a transition plan.

(1) YES

(2) NO ............................................................ [SKIP TO NEXT SUBDOMAIN]

(7) DON’T KNOW .................................................. [SKIP TO NEXT SUBDOMAIN]

(9) REFUSED ...................................................... [SKIP TO NEXT SUBDOMAIN]

F7Q04 Did you participate in the development of that plan?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED
Series 1, No. 52 [ Page 67

Section 7: SELF-DETERMINATION

Note: These items are adapted from the The Arc’s Self-Determination Scale.

F8_INTRO The next questions are statements about activities that you may do. For each statement, please indicate how often

you do each activity: never, rarely, sometimes, usually, or always.

(1) Never

(2) Rarely

(3) Sometimes

(4) Usually

(5) Always

(7) DON’T KNOW

(9) REFUSED

F8Q01_A I keep my appointments and meetings.

F8Q01_B I choose how to spend my personal money.

F8Q01_C I plan weekend activities that I like to do.

F8Q02 How often is the following statement true for you? ‘‘I am able to make choices that are important to me.’’ Would

you say that is never true, rarely true, sometimes true, usually true, or always true?

(1) Never

(2) Rarely

(3) Sometimes

(4) Usually

(5) Always

(7) DON’T KNOW

(9) REFUSED

F8Q03 How often is the following statement true for you? ‘‘I am able to make friends in new situations.’’ Would you say

that is never true, rarely true, sometimes true, usually true, or always true?

(1) Never

(2) Rarely

(3) Sometimes

(4) Usually

(5) Always

(7) DON’T KNOW

(9) REFUSED
Page 68 [ Series 1, No. 52

Section 8: SATISFACTION AND SUPPORT

F9Q01	 In general, how satisfied are you with your life? Would you say very satisfied, satisfied, dissatisfied, or very

dissatisfied?

(1) Very satisfied

(2) Satisfied

(3) Dissatisfied

(4) Very dissatisfied

(7) DON’T KNOW

(9) REFUSED

F9Q02	 How often do you get the social and emotional support you need from your family or friends? Would you say

never, rarely, sometimes, usually, or always?

(1) Never

(2) Rarely

(3) Sometimes

(4) Usually

(5) Always

(7) DON’T KNOW

(9) REFUSED

F9Q03	 If the option was available, would you like to connect with other youth or adult mentors who could provide you

with social, emotional, or career support?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F9Q04	 Now, thinking about your health needs and all the medical and health-related services you receive, how satisfied

or dissatisfied are you with those services? Would you say very satisfied, somewhat satisfied, somewhat

dissatisfied or very dissatisfied?

(1) Very satisfied

(2) Somewhat satisfied

(3) Somewhat dissatisfied

(4) Very dissatisfied

(7) DON’T KNOW

(9) REFUSED
Series 1, No. 52 [ Page 69

Section 9: DEMOGRAPHICS

Subdomain 1. Marital status and living arrangements

F10_INTRO Now I have a few more general questions about you and your household.

F10Q11 Are you currently married, separated, divorced, widowed, or never married?

(1) Married

(2) Separated

(3) Divorced

(4) Widowed

(5) Never married

(7) DON’T KNOW

(9) REFUSED

F10Q12 Are you currently living with a spouse or partner?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F10Q13 Are you currently living with your parent(s)?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

IF F10Q12 = 1 OR F10Q13 = 1, SKIP TO F10Q15.

F10Q14 Do you live alone?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F10Q15 Are you happy with your current living arrangement, or would you like to change where you live or who you live

with?

(1) HAPPY WITH CURRENT ARRANGEMENT

(2) WOULD LIKE TO CHANGE

(7) DON’T KNOW

(9) REFUSED
Page 70 [ Series 1, No. 52

Subdomain 2. Personal earnings and program participation

F10Q21 The next question is about your total income in the past 12 months, including income from all sources such as

wages, salaries, Social Security, help from relatives and so forth. Can you tell me that amount before taxes?

Dollars

(777777) DON’T KNOW

(999999) REFUSED

F10Q22 Compared to other people your age, do you think you have more ability, about the same ability, or less ability to

pay for the things you need?

(1) More ability

(2) About the same ability

(3) Less ability

(7) DON’T KNOW

(9) REFUSED

F10Q23 At any time during the past 12 months, even for 1 month, did you receive any cash assistance from a state or

county welfare program, such as [state TANF name] or General Assistance?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F10Q24 During the past 12 months, did you receive Food Stamps?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED

F10Q25 During the past 12 months, did you receive Supplemental Security Income (also called SSI)?

(1) YES

(2) NO

(7) DON’T KNOW

(9) REFUSED
Series 1, No. 52 [ Page 71

CATI QUESTIONNAIRE EXIT

ALL PATHS LEAD TO THIS EXIT PATH WHEN
 

CONFDOB_X or NEWDOB_X NOT EQUAL NULL
 

CLOSE

Those are all the questions I have. Thank you for participating in the 2007 Survey of Adult Transition and Health (SATH). In

appreciation of your time, we would like to send you 20 dollars.

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO AC_NAME INTRO]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO AC_REFUSED]

AC_NAME INTRO

Can you please give me your name and mailing address?

AC_NAME
 

AC_STREET
 

AC_CITY
 

AC_STATE
 

AC_ZIP
 

[GO TO CELLULAR_PAY]

CELLULAR_PAY

Did we conduct this survey on your cellular telephone?

(1) YES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO CELLULAR_SCRIPT]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO AC_REFUSED]

CELLULAR_SCRIPT

You will also receive an additional $5 to defer your costs for doing the interview on your cellular telephone. [GO TO

AC_REFUSED]

AC_REFUSED [BLANK]

(1) Address correct and confirmed ...................................................... [GO TO AC2]
 

(99) Refused to give/confirm address . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO AC2]
 

AC2	 Those are all the questions I have. I’d like to thank you on behalf of the Centers for Disease Control and

Prevention for the time and effort you’ve spent answering these questions. If you would like more information

about the Survey of Adult Health and Transition, please call the study’s toll-free number, 1–866-900–9601. If you

have questions about your rights as a study participant, you may call 1–800-223–8118, toll-free, and leave a

message asking to speak to the Chairperson of the Ethics Review Board.
Page 72 [ Series 1, No. 52

WEB QUESTIONNAIRE EXIT

ALL PATHS LEAD TO THIS EXIT PATH WHEN

CONFDOB_X or NEWDOB_X NOT EQUAL NULL

Those are all the questions. Thank you for participating in the 2007 Survey of Adult Transition and Health (SATH). In

appreciation of your time, we would like to send you 20 dollars.

Please enter your name and mailing address:

AC_NAME

AC_STREET

AC_CITY

AC_STATE

AC_ZIP

AC2 I’d like to thank you on behalf of the Centers for Disease Control and Prevention for the time and effort you’ve

spent answering these questions. If you would like more information about the 2007 Survey of Adult Transition

and Health (SATH), please call the study’s toll-free number, 1–866–900–9601. If you have questions about your

rights as a study participant, you may call 1–800–223–8118, toll-free, and leave a message asking to speak to the

Chairperson of the Ethics Review Board.
Series 1, No. 52 [ Page 73

CALLBACK SCRIPTS AND ANSWERING MACHINE SCRIPTS

INTRO_LEAD_Y

(Variation of INTRO_1 should appear 1st when calling lead HH)

DESCRIPTION: CALLING LEAD HH TO GATHER SATH R’s CONTACT INFORMATION/SPEAK WITH SATH R

In (INTDATE-YYYY), we conducted a nationwide telephone study on children’s health about a child who was

between the ages of 14–18 years of age at the time. This survey was conducted with the child’s [FILL

RELATION] who recently gave us your telephone number in order to contact their [FILL son/daughter]. This child

would now be approximately [FILL AGE] years old and the Centers for Disease Control and Prevention is now

interested in speaking to [FILL HIM/HER].

Can you tell me how to find this [FILL AGE]-year-old?

(1) YES, WILL GIVE SATH R CONTACT INFORMATION ..................... [GO TO YOUTH_CONT]
 

(2) YES, SATH R IS ON/COMES TO THE TELEPHONE . . . . . . . . . . . . . . . . . . . . . . . [GO TO NEW_RESP_SC]
 

(3) R2001 COMES TO THE TELEPHONE ..................................... [GO TO INTRO_R2001]
 

(4) CONFIRM BUSINESS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO SALZ]
 

(5) R WILL CALL 800 LINE/VERIFY WEBSITE ....................... [GO TO M1_NAME_WEB_ADD]
 

(6) ANSWERING MACHINE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO MSG_REACH]
 

(7) R ASKS FOR LETTER—MAILED . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO UNIVERSAL EXIT- M1_NAME
 

(8) R ASKS FOR LETTER—E-MAILED . . . . . . . . . . . . . . . . . . . . . . . [GO TO UNIVERSAL EXIT- M1_EMAIL]
 

(9) SUPERVISOR REVIEW	 . . . . .[GO TO CALL NOTES BOX] (RAISE YOUR HAND TO GET PERMISSION

BEFORE USING THIS CODE)

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO TERM_BRIEF]

INTRO_LEAD_01R

(Variation of INTRO_1 should appear 1st when calling lead HH)

DESCRIPTION: CALLING LEAD HH TO GATHER R2001’s CONTACT INFORMATION/SPEAK WITH R2001

In (INTDATE-YYYY), we conducted a nationwide telephone study on children’s health about a child who was

between the ages of 14–18 years of age at the time. The Centers for Disease Control and Prevention is now

interested in speaking to the [FILL RELATION] of this child who would now be a [FILL AGE]-year-old adult. A

person from the household that participated in the 2001 interview gave us your telephone number so that we may

contact the parent who completed the 2001 survey.

Can you tell me how to find this [FILL AGE]-year-old’s [FILL RELATION]?

(1) YES, WILL GIVE R2001’s CONTACT INFORMATION . . . . . . . . . . . . . . . . . . . . . . . . [GO TO R2001_CONT]
 

(2) YES, R2001 IS ON/COMES TO THE TELEPHONE .......................... [GO TO INTRO_R2001]
 

(3) CONFIRM BUSINESS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO SALZ]
 

(4) 2001 LEAD WILL CALL 800 LINE/
 

VERIFY WEBSITE ................................................ [GO TO M1_NAME_WEB_ADD]
 

(5) ANSWERING MACHINE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO MSG_REACH]
 

(6) 2001 LEAD ASKS FOR LETTER—MAILED .................. [GO TO UNIVERSAL EXIT- M1_NAME
 

(7) 2001 LEAD ASKS FOR LETTER—E-MAILED ............... [GO TO UNIVERSAL EXIT- M1_EMAIL]
 

(8) SUPERVISOR REVIEW	 . . . . .[GO TO CALL NOTES BOX] (RAISE YOUR HAND TO GET PERMISSION

BEFORE USING THIS CODE)

(9) NEW PERSON COMES TO TELEPHONE ................. [GO TO INTRO_1 then INTRO_LEAD_01R]
 

(99) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO TERM_BRIEF]

INTRO_APPT_PNDG_SCRD

DESCRIPTION: APPT MADE WITH 2001 HOUSEHOLD MEMBER (HHM) BUT R2001 OR 2007 R HAS
 

NOT BEEN IDENTIFIED (REACH_CB)
 

IF NAME GIVEN: Hello. May I please speak to [FILL NAME]?
 

IF NAME NOT GIVEN INTRO BEGINS HERE:
 
Page 74 [ Series 1, No. 52

Hello, my name is . I’m calling on behalf of the Centers for Disease Control and

Prevention. We recently spoke with [FILL ‘‘you’’ if name given/‘‘someone in your household’’ if name not given]

about an important survey on the health care of young adults. I’m calling to complete the interview now.

(1) CONTINUE WITH INTERVIEW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO S2_C]]
 

(2) CONFIRM BUSINESS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO SALZ_BUS_Y]
 

(3) LANGUAGE BARRIER
 

(ANY LANGUAGE OTHER THAN ENGLISH) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO TERM_BRIEF]
 

(4) NO PERSON AT HOME WHO IS OVER 17 ........................................ [GO TO S2_B]
 

(5) ANSWERING MACHINE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO MSG_PENDING SCREENED]
 

(6) R WILL CALL 800 LINE/VERIFY WEBSITE ......................... [GO TO UE-M1_NAME_WEB]
 

(7) R ASKS FOR LETTER—MAILED .................................. [GO TO UE-M1_NAME_WEB]
 

(8) R ASKS FOR LETTER—E-MAILED ................................ [GO TO UE-M1_NAME_WEB]
 

(9) SUPERVISOR REVIEW	 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CALL NOTES BOX]

(RAISE YOUR HAND TO GET PERMISSION BEFORE USING THIS CODE) . . . . [GO TO TERM_BRIEF]

INTRO_APPT_SCRND_Y

DESCRIPTION: APPT TO RESUME A BREAK-OFF WITH 2007 R OR PROXY

**[FILL NAME] IS BASED ON YOUTH_NAME_A OR PROX_NAME_A**

IF NAME GIVEN: Hello. May I please speak to [FILL NAME]?

Hello, my name is . I’m calling on behalf of the Centers for Disease Control and

Prevention. We started an interview with [FILL ‘‘you’’ (if name given)/‘‘a [FILL AGE]-year-old in your

household’’ or ‘‘a proxy for a [FILL AGE]-year-old’’ (if name not given)] about the health care of young adults.

I’m calling back now to finish the interview. Are you the [FILL AGE]-year-old/ proxy for a [FILL AGE]-year-old

that we started the interview with?

(1) CONTINUE WITH INTERVIEW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO S2_C]]
 

(2) CONFIRM BUSINESS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO SALZ_BUS_Y]
 

(3) LANGUAGE BARRIER
 

(ANY LANGUAGE OTHER THAN ENGLISH) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO TERM_BRIEF]
 

(4) NO PERSON AT HOME WHO IS OVER 17 ........................................ [GO TO S2_B]
 

(5) ANSWERING MACHINE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO MSG_PENDING SCREENED]
 

(6) R WILL CALL 800 LINE/VERIFY WEBSITE ......................... [GO TO UE-M1_NAME_WEB]
 

(7) R ASKS FOR LETTER—MAILED .................................. [GO TO UE-M1_NAME_WEB]
 

(8) R ASKS FOR LETTER—E-MAILED ................................ [GO TO UE-M1_NAME_WEB]
 

(9) SUPERVISOR REVIEW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CALL NOTES BOX]
 

(RAISE YOUR HAND TO GET PERMISSION BEFORE USING THIS CODE) . . . . [GO TO TERM_BRIEF]

TRAINING POINT: CONFIRM THAT YOU ARE SPEAKING WITH THE SAME PERSON WHO STARTED

THE INTERVIEW.

INTRO_APPT_01R

DESCRIPTION: APPT TO RESUME A BREAK-OFF WITH R2001

**[FILL NAME] IS BASED ON R2001_NAME_A**

IF NAME GIVEN: Hello. May I please speak to [FILL NAME]?

IF NAME NOT GIVEN INTRO BEGINS HERE:

Hello, my name is . I’m calling on behalf of the Centers for Disease Control and

Prevention. We started an interview with you or someone in your household about the health care of young adults.
 

I’m calling back now to finish the interview.
 

[If name not given ‘‘May I please speak with the person we spoke with [FILL APPT SET DATE]?’’
 

(1) CONTINUE WITH INTERVIEW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO S2_C]]
 

(2) CONFIRM BUSINESS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO SALZ_BUS_Y]
 

(3) LANGUAGE BARRIER (ANY LANGUAGE OTHER THAN ENGLISH) . . . . . . . . . [GO TO TERM_BRIEF]
 

(4) NO PERSON AT HOME WHO IS OVER 17 ........................................ [GO TO S2_B]
 

(5) ANSWERING MACHINE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO MSG_PENDING SCREENED]
 
Series 1, No. 52 [ Page 75

(6) R WILL CALL 800 LINE/VERIFY WEBSITE ......................... [GO TO UE-M1_NAME_WEB]
 

(7) R ASKS FOR LETTER—MAILED .................................. [GO TO UE-M1_NAME_WEB]
 

(8) R ASKS FOR LETTER—E-MAILED ................................ [GO TO UE-M1_NAME_WEB]
 

(9) SUPERVISOR REVIEW	 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO CALL NOTES BOX]

(RAISE YOUR HAND TO GET PERMISSION BEFORE USING THIS CODE)

TRAINING POINT: CONFIRM THAT YOU ARE SPEAKING WITH THE SAME PERSON WHO

STARTED THE INTERVIEW.

Intro_1_HUDI_PENDGSCRND

DESCRIPTION: INTRO FOR 2001 HHM THAT HUNG UP DURING INTRO (HUDI)

Hello, my name is . I’m calling on behalf of the Centers for Disease Control and

Prevention. We’re conducting a nationwide study about the health care of young adults.

(1) CONTINUE WITH INTERVIEW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO S1] 
 

(2) CONFIRM BUSINESS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]
 

(3) ANSWERING MACHINE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO GO TO MSG_PNDNG_SCRND]
 

Intro_1_HUDI_Y

DESCRIPTION: INTRO FOR YOUTH HOUSHOLDS THAT HUNG UP DURING INTRO (HUDI)

Hello, my name is . I’m calling on behalf of the Centers for Disease Control and

Prevention. We’re conducting a nationwide study about the health care of young adults.

(1) CONTINUE WITH INTERVIEW . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO S1] 
 

(2) ANSWERING MACHINE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO MSG_PNDNG_SCRND]

S1 Am I speaking to someone who lives in this household who is over 17 years old?

(1) YES, I AM THAT PERSON . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO BREAK OFF POINT (INTRO)]
 

(2) NO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO S1_SCRIPT]
 

(3) THIS IS A BUSINESS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO SALZ]
 

(4) NEW PERSON COMES TO TELEPHONE ............... [GO BACK TO INTRO_APPT_PNDG_SCRD ]
 

(5) DOES NOT LIVE IN HOUSEHOLD . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO TERM_BRIEF]
 

(7) NO PERSON AT HOME WHO IS OVER 17 ........................................ [GO TO S2_B]
 

(9) REFUSED . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO TERM_BRIEF]

S1_SCRIPT Is there someone who lives in this household who is over 17 that I may speak with?

(1) YES, NEW PERSON COMES TO TELEPHONE . . . . . . . . . . . . . . . . .[GO TO INTRO_APPT_ PNDG_SCRD]
 

(2) NO ............................................................................ [GO TO S2B]

SALZ_BUS_Y Hello. May I please speak to [FILL NAME]?

(1) YES, YOUTH COMES TO TELEPHONE . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO INTRO_ APPT_SCRND_Y]
 

(2) NO, YOUTH NOT AVAILABLE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO SALZ_BUS_Y_APPT
 

SALZ_BUS_Y_APPT

What would be a good time for us to call (him/her) back?

CREATE AN APPOINTMENT

[GO TO TERM_BRIEF WITHOUT TEXT IN PARENTHESES]

TERM_BRIEF Thank you for your time (on behalf of the Centers for Disease Control).

S2_B Does anyone live in your household who is over 17 years old?

(1) Yes . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO [BLANK] script shown below]
 

(2) No . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . [GO TO PH_CONF]

[BLANK] Thank you, we’ll try back another time.
Page 76 [ Series 1, No. 52

S2_C Just to confirm, am I speaking with the [FILL RELATION] of the [FILL AGE]/ [FILL AGE]-year-old that we

spoke with on [FILL APPT SET DATE]?

(1) Yes ...................................................................... [GO TO REMIND 1]

(2) No . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .[GO TO CB1 TO SET AN APPOINTMENT]

REMIND1 I want to remind you that we will be asking questions about [you/ IF PROXY, THEN ‘‘the [FILL AGE]

year-old’’] for the rest of this interview.

[CONTINUE WITH INTERVIEW AT POINT OF BREAKOFF]
Series 1, No. 52 [ Page 77

ANSWERING MACHINE SCRIPTS

MSG_PENDING_SCREENED

(PLEASE READ SLOWLY AND CLEARLY.)

Hello. The Centers for Disease Control and Prevention is conducting a survey about the health care of young

adults. Would you please call us, toll-free, at 1–866–900–9601 to determine survey eligibility? For most people,

the survey will be very brief and we would be glad to answer any questions you have. The toll-free number again

is 1–866–900–9601. Thank you.

MSG_REACH

DESCRIPTION: AM [ANSWERING MACHINE] MESSAGE FOR RESPONDENT THAT MAY KNOW 2001

OR 2007’S CONTACT INFORMATION (NO PRIOR APPOINTMENT MADE)

(PLEASE READ SLOWLY AND CLEARLY.)

Hello. The Centers for Disease Control and Prevention is conducting a survey about the health care of young

adults. Would you please call us, toll-free, at (FILL ‘‘1–866–900–9601’’ FOR REGULAR INTERVIEWS, ELSE

FILL ‘‘1–866–900–9601’’ FOR RELAY INTERVIEWS)? We are available days, evenings, and weekends. This

will be very brief and we would be glad to answer any questions you have. The toll-free number again is (FILL

‘‘1–866–900–9601’’ FOR REGULAR INTERVIEWS, ELSE FILL ‘‘1–866–900–9601’’ FOR RELAY

INTERVIEWS). Thank you.

Answering machine message for appointments:

MSG_Y_APPT

(PLEASE READ SLOWLY AND CLEARLY.)

Hello. I am calling on behalf of the Centers for Disease Control and Prevention regarding a nationwide study

about the health care of young adults. When we spoke previously about this important study, you requested that

we call you back at this time. I’m sorry that we’ve missed you. We’ll try to contact you again soon but please feel

free to return our call anytime at 1–866–900–9601. Also, if you have any questions, that number again is

1–866–900–9601. Thank you.

MSG_APPT_REACH

DESCRIPTION: MESSAGE FOR RESPONDENT THAT KNOWS 2001 OR 2007 RESPONDENT’S CONTACT

INFORMATION (PRIOR APPOINTMENT SET)

(PLEASE READ SLOWLY AND CLEARLY.)

Hello. I am calling on behalf of the Centers for Disease Control and Prevention regarding a nationwide study

about the health care of young adults. When we spoke previously about this important study, you requested that

we call you back at this time. I’m sorry that we’ve missed you. We’ll try to contact you again soon but please feel

free to return our call anytime at (FILL ‘‘1–866–900–9601’’ FOR REGULAR INTERVIEWS ELSE FILL

‘‘1–866–900–9601’’ FOR RELAY INTERVIEWS).
Page 78 [ Series 1, No. 52

Appendix IV. 2007 SATH Endorsement Letters

General Endorsement Letter

Public Health Service U.S. DEPARTMENT OF HEALTH & HUMAN SERVICES Centers for Disease Control and Prevention

National Center for Health Statistics

3311 Toledo Road

Hyattsville, Maryland 20782

The U.S. Department of Health and Human Services and the Centers for Disease Control and Prevention are conducting the

Survey of Adult Transition and Health (SATH) and we need your help to make it a success. This study focuses on the quality of

health care—a topic of interest for millions of households across the country. We are particularly interested in:

+ The well-being of young adults and the quality of their health insurance coverage

+ The type of health care and services available for people moving into adulthood

+ The impact of young adult health and health care on their families

Local, state, and federal officials depend on the results of this study to measure well-being and the status of healthcare as

members of our population move into adulthood. This study will provide information about young adults and their families which

will help to guide policy makers, advocates, and researchers. Although participation is completely voluntary and there is no

penalty for not answering a question, we hope you will agree to help us. Answers to this study may help shape programs in the

years ahead.

This study is authorized by the U.S. Public Health Service Act. It (and other federal laws) protects your information; we will take

all possible steps to protect your privacy. The information you report will only be used for statistical research.

You can call the study’s toll-free telephone number (1–866–900–9601) if you want to take part in the study now, or to learn more

about the study’s background and what you will be asked. You can also visit this web site if you’d like to participate immediately

or learn more: http://www.cdc.gov/nchs/about/major/slaits/sath.htm.

Thank you very much for your help with this important research.

Sincerely,

(SIGNATURE)

Edward J. Sondik, Ph.D.

If you prefer to contact us using a TTY, please call the AT&T Relay Service at 1–800-855–2881 and request that

1–866–900–9601 be called.

Director, National Center for Health Statistics

Centers for Disease Control and Prevention
Series 1, No. 52 [ Page 79

Survey of Adult Transition and Health

Frequently Asked Questions

Why is this study being conducted?

The Centers for Disease Control and Prevention is committed to improving people’s health, health care and well-being. State and

federal health authorities are depending on the results of the Survey of Adult Transition and Health to help them understand how

best to meet health care needs as people move into adulthood.

How will this information be used?

Agencies in your state will use this information to improve programs and services for children and their families. The federal

government will also use this information to learn about the types of support services that states need to support young adult

health, healthcare and well-being.

You may visit http://www.cdc.gov/nchs/about/major/slaits/sath.htm to find more information about the study.

How will you protect my privacy?

We are bound by law to maintain strict confidentiality standards. Your private information will never be associated with any

results.

If you would like more information about confidentiality, the federal laws that protect your information are described in detail at

www.cdc.gov/nchs/about/policy/confiden.htm.

How do I know this is a legitimate survey?

The CDC is conducting this survey with the National Opinion Research Center at the University of Chicago (NORC) as its

authorized contractor. You may call NORC to verify that this is a legitimate survey. The toll-free number is 1–866–900–9601.

If you would like to learn more about your rights as a respondent, please call the Chairperson of the Research Ethics Review

Board at the National Center for Health Statistics, toll-free, at 1–800–223–8118. Please leave a brief message with your name and

telephone number. Say that you are calling about Protocol #2007–27. Your call will be returned as soon as possible.

What if I have questions about health, health care, and health care facilities?

You may call the CDC Information Contact Center toll-free at 1–800–CDC–INFO (1–800–232–4636) for more information, or to

get the telephone number of a doctor or clinic near you.
Page 80 [ Series 1, No. 52

Endorsement Letter for 2007 SATH Respondent

Public Health Service U.S. DEPARTMENT OF HEALTH & HUMAN SERVICES Centers for Disease Control and Prevention

National Center for Health Statistics

3311 Toledo Road

Hyattsville, Maryland 20782

You have requested information on an important study run by the Centers for Disease Control and Prevention (CDC). This

nationwide survey is about the health of young adults, and their health status and health care as they get older. In 2001, we spoke

to someone in your household about health care. We would now like to look at changes that may have occurred in your health or

healthcare over the past few years by getting information directly from you.

We know little about changes that might occur in health and health care as a person ages from an adolescent to an adult. We need

to learn more about people in this age range and you can help.

You can call the study’s toll-free telephone number (1–866–900–9601) if you want to take part in the study now, or to learn more

about the study’s background and what you will be asked. You can also visit this web site if you’d like to participate immediately

or learn more: http://www.cdc.gov/nchs/about/major/slaits/sath.htm.

We need your help to make this study a success, and hope you will agree to participate. It is your choice to participate. It will take

about 15 minutes to answer the questions.

This study is authorized by the U.S. Public Health Service Act. It (and other federal laws) protects your information; we will take

all possible steps to protect your privacy. The information you report will only be used for statistical research.

Your answers may help improve the health of adults in your area and the nation, now and in the years ahead. Thank you for your

assistance.

Sincerely,

(SIGNATURE)

Edward J. Sondik, Ph.D.

Director, National Center for Health Statistics

Centers for Disease Control and Prevention

P.S. In appreciation for your time and effort, we will send you $20 in cash when you complete the interview.

If you prefer to contact us using a TTY, please call the AT&T Relay Service at 1–800–855–2881 and request that

1–866–900–9601 be called.
Series 1, No. 52 [ Page 81

Survey of Adult Transition and Health

Frequently Asked Questions

How will this survey benefit others?

We need to learn more about changes that might occur in health and health care as a person ages from an adolescent to an adult.

Your answers may help improve the health of adults in your area and the nation, now and in the years ahead.

Does this study apply to me?

We are interested in talking to some young adults between the ages of 19 and 23. We need your information to understand how

your health and health care have changed since you were a teen.

How will you protect my privacy?

We are bound by law to maintain strict confidentiality standards. Your private information will never be associated with any

results.

If you would like more information about confidentiality, the federal laws that protect your information are described in detail at

www.cdc.gov/nchs/about/policy/confiden.htm.

How do I know this is a legitimate survey?

The CDC is conducting this survey with the National Opinion Research Center at the University of Chicago (NORC) as its

authorized contractor. You may call NORC to verify that this is a legitimate survey. The toll-free number is 1–866–900–9601.

If you would like to learn more about your rights as a respondent, please call the Chairperson of the Research Ethics Review

Board at the National Center for Health Statistics, toll-free, at 1–800–223–8118. Please leave a brief message with your name and

telephone number. Say that you are calling about Protocol #2007–27. Your call will be returned as soon as possible.

What if I have questions about health, health care, and health care facilities?

You may call the CDC Information Contact Center toll-free at 1–800–CDC–INFO (1–800–232–4636) for more information, or to

get the telephone number of a doctor or clinic near you.
Page 82 [ Series 1, No. 52

Appendix V. Internet Offer Letter

Public Health Service U.S. DEPARTMENT OF HEALTH & HUMAN SERVICES Centers for Disease Control and Prevention

National Center for Health Statistics

3311 Toledo Road

Hyattsville, Maryland 20782

Dear [MAILMERGE],

The Centers for Disease Control and Prevention are conducting the Survey of Adult Transition and Health (SATH). This

important survey is intended to monitor the well-being, health and healthcare needs of people in your age group.

We are asking you to participate in this important survey by accessing our website and using the password provided for you

below. In appreciation of your time and effort spent completing the survey, we will send you $20.

Web:

The web survey will take approximately 20 minutes to complete. Please visit this secure website to access the survey:

http://www.cdc.gov/nchs/about/major/slaits/sath.htm.

For security purposes, use the password below to access the web survey:

Password: [MAILMERGE]

If you have any trouble accessing the survey or have any other questions, please call us at 1–866–900–9601.

Telephone:

If you prefer to complete the interview over the telephone, please call us at 1–866–900–9601.

Our intended subject for this survey was born in [FILL MONTH and YEAR from 2001 CSHCN DOB]. If you are not this person,

please contact us at 1–866–900–9601.

All information collected for this survey is confidential and protected by the Public Health Service Act [Secs. 306 & 2012 (a)(7)].

If you would like to learn more about your rights as a respondent, please call the office of the Research Ethics Review Board at

the National Center for Health Statistics, toll-free, at 1–800–223–8118. Please leave a brief message with your name and telephone

number. Say that you are calling about Protocol #2007–27.

Thank you very much for your help with this important research.

Sincerely,

(SIGNATURE)

Edward J. Sondik, Ph.D.

Director, National Center for Health Statistics

Centers for Disease Control and Prevention
Series 1, No. 52 [ Page 83

Appendix VI. Thank You Letters

Sent to cases completed via landline telephone

Public Health Service U.S. DEPARTMENT OF HEALTH & HUMAN SERVICES Centers for Disease Control and Prevention

National Center for Health Statistics

3311 Toledo Road

Hyattsville, Maryland 20782

Dear Respondent:

Thank you for participating in the Survey of Adult Transition and Health. The information you provided about your health and

health care will be used to develop adult health programs across the country. In appreciation for the time and effort you spent

answering our questions, we are enclosing $20.

If you have any questions, you can call the study staff toll-free at 1–866–900–9601, or you can visit the study’s web site at

http://www.cdc.gov/nchs/about/major/slaits/sath.htm.

Thank you again for your help.

Sincerely,

(SIGNATURE)

Edward J. Sondik, Ph.D.

Director, National Center for Health Statistics

Centers for Disease Control and Prevention
Page 84 [ Series 1, No. 52

Sent to cases completed via cellular telephone

Public Health Service U.S. DEPARTMENT OF HEALTH & HUMAN SERVICES Centers for Disease Control and Prevention

National Center for Health Statistics

3311 Toledo Road

Hyattsville, Maryland 20782

Dear Respondent:

Thank you for participating in the Survey of Adult Transition and Health. The information you provided about your health and

health care will be used to develop adult health programs across the country. In appreciation for the time and effort you spent

answering our questions, we are enclosing $25.

If you have any questions, you can call the study staff toll-free at 1–866–900–9601, or you can visit the study’s web site at

http://www.cdc.gov/nchs/about/major/slaits/sath.htm.

Thank you again for your help.

Sincerely,

(SIGNATURE)

Edward J. Sondik, Ph.D.

Director, National Center for Health Statistics

Centers for Disease Control and Prevention
Series 1, No. 52 [ Page 85

Appendix VII. Disposition Code Frequencies and Unweighted Interview

Completion Rate Calculation

Table VI. Unweighted distribution of final case dispositions: 2007 SATH

Code or Frequency

Disposition category formula or rate

Did not contact 2001 respondent ................................ NP 7,409

Contacted 2001 respondent (or proxy if 2001 respondent is deceased), did not

contact young adult ........................................ NY 1,578

Contacted young adult, interview incomplete ......................... NI 30

Partial interview complete ................................... PC 6

Full interview complete ..................................... FC 1,910

Total sample ............................................. 10,933

Interview completion rate ..................................... (PC + FC)/TOTAL 17.5%

NOTE: SATH is Survey of Adult Transition and Health.
Vital and Health Statistics

Series Descriptions

ACTIVE SERIES

Series 1. Programs and Collection Procedures—This type of report

describes the data collection programs of the National Center

for Health Statistics. Series 1 includes descriptions of the

methods used to collect and process the data, definitions, and

other material necessary for understanding the data.

Series 2. Data Evaluation and Methods Research—This type of

report concerns statistical methods and includes analytical

techniques, objective evaluations of reliability of collected

data, and contributions to statistical theory. Also included are

experimental tests of new survey methods, comparisons of

U.S. methodologies with those of other countries, and as of

2009, studies of cognition and survey measurement, and final

reports of major committees concerning vital and health

statistics measurement and methods.

Series 3. Analytical and Epidemiological Studies—This type of

report presents analytical or interpretive studies based on vital

and health statistics. As of 2009, Series 3 also includes

studies based on surveys that are not part of continuing data

systems of the National Center for Health Statistics and

international vital and health statistics reports.

Series 10. Data From the National Health Interview Survey—This

type of report contains statistics on illness; unintentional

injuries; disability; use of hospital, medical, and other health

services; and a wide range of special current health topics

covering many aspects of health behaviors, health status, and

health care utilization. Series 10 is based on data collected in

this continuing national household interview survey.

Series 11. Data From the National Health Examination Survey, the

National Health and Nutrition Examination Surveys, and

the Hispanic Health and Nutrition Examination Survey—

In this type of report, data from direct examination, testing,

and measurement on representative samples of the civilian

noninstitutionalized population provide the basis for (1)

medically defined total prevalence of specific diseases or

conditions in the United States and the distributions of the

population with respect to physical, physiological, and

psychological characteristics, and (2) analyses of trends and

relationships among various measurements and between

survey periods.

Series 13. Data From the National Health Care Survey—This type of

report contains statistics on health resources and the public’s

use of health care resources including ambulatory, hospital,

and long-term care services based on data collected directly

from health care providers and provider records.

Series 20. Data on Mortality—This type of report contains statistics on

mortality that are not included in regular, annual, or monthly

reports. Special analyses by cause of death, age, other

demographic variables, and geographic and trend analyses

are included.

Series 21. Data on Natality, Marriage, and Divorce—This type of

report contains statistics on natality, marriage, and divorce

that are not included in regular, annual, or monthly reports.

Special analyses by health and demographic variables and

geographic and trend analyses are included.

Series 23. Data From the National Survey of Family Growth—These

reports contain statistics on factors that affect birth rates,

including contraception and infertility; factors affecting the

formation and dissolution of families, including cohabitation,

marriage, divorce, and remarriage; and behavior related to

the risk of HIV and other sexually transmitted diseases.

These statistics are based on national surveys of women and

men of childbearing age.

DISCONTINUED SERIES

Series 4. Documents and Committee Reports—These are final

reports of major committees concerned with vital and health

statistics and documents. The last Series 4 report was

published in 2002. As of 2009, this type of report is included

in Series 2 or another appropriate series, depending on the

report topic.

Series 5. International Vital and Health Statistics Reports—This

type of report compares U.S. vital and health statistics with

those of other countries or presents other international data of

relevance to the health statistics system of the United States.

The last Series 5 report was published in 2003. As of 2009,

this type of report is included in Series 3 or another series,

depending on the report topic.

Series 6. Cognition and Survey Measurement—This type of report

uses methods of cognitive science to design, evaluate, and

test survey instruments. The last Series 6 report was

published in 1999. As of 2009, this type of report is included

in Series 2.

Series 12. Data From the Institutionalized Population Surveys—

The last Series 12 report was published in 1974. Reports

from these surveys are included in Series 13.

Series 14. Data on Health Resources: Manpower and Facilities—

The last Series 14 report was published in 1989. Reports on

health resources are included in Series 13.

Series 15. Data From Special Surveys—This type of report contains

statistics on health and health-related topics collected in

special surveys that are not part of the continuing data

systems of the National Center for Health Statistics. The last

Series 15 report was published in 2002. As of 2009, reports

based on these surveys are included in Series 3.

Series 16. Compilations of Advance Data From Vital and Health

Statistics—The last Series 16 report was published in 1996.

All reports are available online, and so compilations of

Advance Data reports are no longer needed.

Series 22. Data From the National Mortality and Natality Surveys—

The last Series 22 report was published in 1973. Reports

from these sample surveys, based on vital records, are

published in Series 20 or 21.

Series 24. Compilations of Data on Natality, Mortality, Marriage, and

Divorce—The last Series 24 report was published in 1996.

All reports are available online, and so compilations of reports

are no longer needed.

For answers to questions about this report or for a list of reports published

in these series, contact:

Information Dissemination Staff

National Center for Health Statistics

Centers for Disease Control and Prevention

3311 Toledo Road, Room 5412

Hyattsville, MD 20782

1–800–232–4636

E-mail: cdcinfo@cdc.gov

Internet: http://www.cdc.gov/nchs
U.S. DEPARTMENT OF

HEALTH & HUMAN SERVICES

Centers for Disease Control and Prevention

National Center for Health Statistics

3311 Toledo Road

Hyattsville, MD 20782

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T38743 (03/2011)

DHHS Publication No. (PHS) 2011–1329, Series 1, No. 52