# Session Co-Chair

Patricia V. Smith, President, LDA

March 30 & 31, 2011 Arlington, VA 

# Lyme Disease Association Promoting Community Integrated Pest Management (IPM) to Prevent Tick- Borne Diseases

Session 4 Public Outreach Strategies to Reach Targeted Populations

# Lyme Disease Association  

# National non profit 501(c)(3), all volunteer  

# Mission:  

# Lyme & TBD prevention, education, research funding, patient support  

# Combined Federal Campaign 2010  

# LDA new website launch June 11, 2010  

# cutting edge technology, new resources  

# www.LymeDiseaseAssociation.org

# LDA is EPA PESP Partner  

# Environmental Protection Agency's Pesticide Environmental Stewardship Program (PESP)  

## effort to reduce risks to pests, in particular, ticks, thereby reducing risks to tick- borne diseases. 

##  

# The thrust of this partnership with USEPA is to educate schools and families on the necessity of protection from exposure to ticks which may 

# carry disease causing pathogens. This strategy includes developing tools to be used in schools and developing educational tools for people who 

# have access to public lands for outdoor uses, i.e. walking, hiking.

# LDA Research $$$ Recipients

 Boston Medical Center  Brigham & Woman’s  Columbia University  Fox Chase Cancer Center  Jersey Shore Medical Center  Neurology Research Foundation/New York Univ.  New York Medical College  NY Psychiatric Institute  NIH (National Institutes of Health)/ NASA  Rockefeller University
 Science Center University City
 Tulane Regional Primate Center
 University of California, Davis
 University of Medicine & Dentistry, NJ
 University of New Haven
 University of Pennsylvania
 U. of Pennsylvania, Edinboro
 University of Rhode Island
 US Dept. of Agriculture (UDSA)

# LDA-funded research published in peer review includes these journals

 

### PLOS One 2010 (2)  

### Emerging Infectious Diseases July 2008  

### Neurology  

### Proceedings of National 

### Academy of Science 2004  

### Journal of American Medical Association (JAMA)  

### Journal of Clinical Microbiology 2005  

### Infection  

### Psychiatric Clinics of North America  

### Journal of Psychiatry & Clinical Neuroscience (2)  

### Infection & Immunity 2006  

### Journal of International Neuropsychological Soc.  

### JSTBD (2)  

### Archives General Psychiatry 2009  

### Entomological Society of America  

### Journal of Clinical Microbiology  

### Neurobiology of Disease 2010  

### Journal of Bacteriology 2011  

### Journal of Medical Entomology 2010  

### Gene 2009

# . LDA Umbrella

 

# Organized LDAnet  

# 43 allied organizations: affiliates, chapters, coalitions, programs in 25 states & military  

# They are separate (except chapters who 

# operate as part of LDA) but cooperate with LDA on fight against tick- borne diseases

# Columbia University 2007 

# Lyme & Tick- Borne Diseases Research Center LDA National Spokesperson Mary McDonnell, Battlestar Galactica Star; C. Ben Beard, Chief of VectorBorne Diseases, CDC; Jeffrey Lieberman, Chair, Dept. of Psychiatry, Columbia; Brian Fallon, Research Center Director; Dr. Lee Goldman Executive Vice President for Health and Biomedical Sciences & Dean of the Faculties of Health Sciences and Medicine

# LDA Programs

 

# Nationwide - talks, health fairs, radio, TV  

# Using all volunteers  

# LDA provides free material  

# Info on town water bill  

# Public  

# Corporations  

# Schools  

# Officials  

# Doctors & other health care providers (12 th 

# scientific conference Oct 1,2 in Philadelphia

# Website & Information Line

 

# LDA has gotten 18M hits/yr on website  

# Now has new upgraded site  

# Most info can be downloaded free  

# Pamphlets mailed for free, other groups distribute  

# Approaching 2M printed pieces  

# Free video clips, can order videos  

# Information line (for those with no web access)

# LDA Presents: Free Education Module- Run from Site

### LDA Materials & Programs

# TickLES & Tick Tackler

 

## LDA Collaborator with University of Medicine & Dentistry- NJ Medical School (UMDNJ)  

### Created a prevention video TickLES (Tick Learning and Education for Schools) and interactive video game (Tick Tacklers)  for grades 4-8.  

### The video and game will enable children to  understand what a tick is  recognize a tick attachment (bite)  learn what to do if bitten,  learn the symptoms of Lyme  Learn prevention measures.  

## Acting under the auspices of an Environmental Protection Agency grant  

### UMDNJ compiled a team of experts to develop the material and make it kid friendly.  

### LDA was a collaborator on the project and is hosting the video and game on its website, free to all.

# 3 Focus Questions for Session

 

# What are obstacles you encounter to getting the public to adopt tick prevention measures (especially IPM) and how do you overcome them?  

# In this era of fiscal constraints, what gives your program “bang for the buck”?  

# What does your program offer that advances the national fight against tick- borne diseases?

# 1. Program Obstacles

 What are obstacles you encounter to getting the public to adopt tick prevention measures (especially IPM) and how do you overcome them?  Program provider must have credibility

 Accountability, transparency  Public must recognize seriousness of problem

 People don’t think it will happen to them  Facts: Updated stats, graphics, many child oriented  Message pointed, concise, direct  Consistent message (removal time)  Use of personal stories  Professionals sharing facts & personal stories  Set an example (tick remover at school)  More media coverage - PSA, releases  Public is looking for natural or less toxic, inexpensive prevention products

 Educate private industry to provide help to homeowners  Provide monies for research on natural products (nematode research)  Govt./corporate policies

 E.g. Dark colored clothing for rangers, utility, treated clothing for army. why not others  Stress practicality can’t tell FL people to wear long clothes ( spray shoes, clothes, use skin products)  Timely information

 Don’t wait for published info to catch up to what is happening (see a problem in an area, talk about it)  Not enough people doing the job of educating (Epidemic spreading faster than resources)  Deliberate sabotaging of educational efforts due to personal gain (real estate values)  Socio economic, educational, etc. limitations - people don’t go to events, read

# 2. Bang for Buck

 

# In this era of fiscal constraints, what gives your program “bang for the buck”?  

## Partnerships  

## Volunteers & many with personal experience, passionate 

## about cause, we’re accessible to volunteers, family atmosphere, focus on one thing  

## Going into community & using its resources, low overhead  

## Grassroots-staying at community level, adopt to public needs  

## We are invited, adopt program to audience  

## Generally free  

## Free printed brochures & handouts available  

## Easy access to resources outside organization  

## Professionals, don’t charge public  

## Getting message out w/o lots of red tape

# 3. 

# Advances National Fight

 What does your program offer that advances the national fight against tick- borne diseases?  Materials applicable to east & west coasts, Midwest  Attract national experts because we are all volunteer, go the extra mile to research & find answers from extensive list of experts we consult  Often use local resources and link to national issue  Diversity: Work with local, state, & national orgs., colleges & schools, EPA  Flexibility: Work locally get stats both from local areas and national  Give people we work with ability to be creative  Gear programs to where everyone can participate, not political, not socio economic, focus on seniors, kids, animals, no one excluded  Adjust to literature & science  Take local situations and apply them to national level, states feel connected, no borders  Listen to audience (e.g., some limit WA1 babesia to certain areas),  Follow through & sharing of info with partners and others (Ladysmith)  Provide simple generic info and specific info for areas  Website & brochures reasonably up to date  Give not take all the time, come to us again  We provide tools for others to do the programs (educational grants)