II 

118TH CONGRESS 

2D SESSION H. R. 7189 

IN THE SENATE OF THE UNITED STATES 

SEPTEMBER 24, 2024 

Received 

AN ACT 

To amend the Public Health Service Act to reauthorize a 

national congenital heart disease research, surveillance, 

and awareness program, and for other purposes. 

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled, 


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1 SECTION 1. SHORT TITLE. 

2 This Act may be cited as the ‘‘Congenital Heart Fu3 tures Reauthorization Act of 2024’’. 

4 SEC. 2. REAUTHORIZATION OF NATIONAL CONGENITAL 

5 HEART DISEASE RESEARCH, SURVEILLANCE, 

6 AND AWARENESS PROGRAM. 

7 Section 399V–2 of the Public Health Service Act (42 

8 U.S.C. 280g–13) is amended— 

9 (1) by redesignating subsections (f) and (g) as 

10 subsections (g) and (h), respectively; 

11 (2) by inserting after subsection (e) the fol12 lowing: 

13 ‘‘(f) REPORT AND STRATEGY.— 

14 ‘‘(1) REPORT.—Not later than 2 years after the 

15 date of enactment of the Congenital Heart Futures 

16 Reauthorization Act of 2024, the Secretary shall 

17 issue a report to the Committee on Energy and 

18 Commerce of the House of Representatives and the 

19 Committee on Health, Education, Labor, and Pen20 sions of the Senate including the following: 

21 ‘‘(A) A description of past and present ac22 tivities of the Department of Health and 

23 Human Services to increase awareness and 

24 knowledge of the public with respect to con25 genital heart disease, including efforts to adVerDate Sep 11 2014 21:58 Sep 26, 2024 Jkt 049200 PO 00000 Frm 00002 Fmt 6652 Sfmt 6201 E:\BILLS\H7189.RDS H7189

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1 dress the lifelong needs of congenital heart dis2 ease patients. 

3 ‘‘(B) An assessment of past and present 

4 activities of the Department of Health and 

5 Human Services to increase education and 

6 training of health care providers with respect to 

7 congenital heart disease, including efforts to ad8 dress the lifelong needs of congenital heart dis9 ease patients. 

10 ‘‘(C) A description of the current work11 force capacity in the United States of health 

12 care providers who treat adult patients living 

13 with congenital heart disease. 

14 ‘‘(2) STRATEGY.— 

15 ‘‘(A) DEVELOPMENT; SUBMISSION TO CON16 GRESS.—Not later than 1 year after submitting 

17 the report required by paragraph (1), the Sec18 retary shall develop and submit to Congress a 

19 strategy for improving efforts to increase 

20 awareness and knowledge of the public and edu21 cation and training of health care providers 

22 with respect to congenital heart disease. Such 

23 strategy shall include findings and rec24 ommendations to— 


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1 ‘‘(i) address any public awareness and 

2 research gaps and opportunities related to 

3 the lifelong needs of congenital heart dis4 ease patients, including long-term health 

5 outcomes, quality of life, mental health, 

6 and health care utilization; 

7 ‘‘(ii) address any shortages in the cur8 rent workforce of health care providers 

9 who treat adult patients living with con10 genital heart disease, which may include 

11 strategies to enhance fellowship training 

12 programs or other continuing education 

13 programs; and 

14 ‘‘(iii) foster collaboration and dissemi15 nation of information across Federal agen16 cies, health care providers, researchers, 

17 and patient organizations. 

18 ‘‘(B) CONSULTATION.—In developing the 

19 strategy under subparagraph (A), the Secretary 

20 shall, as appropriate, consult with qualified 

21 stakeholder groups, including patient organiza22 tions, health care professionals, research enti23 ties, health insurance providers, accrediting or24 ganizations, and relevant Federal agencies, in25 cluding the Centers for Disease Control and 


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1 Prevention, the National Institutes of Health, 

2 and the Health Resources and Services Admin3 istration.’’; and 

4 (3) in subsection (h), as so redesignated, by 

5 striking ‘‘2020 through 2024’’ and inserting ‘‘2025 

6 through 2029’’. 

Passed the House of Representatives September 23, 

2024. 

Attest: KEVIN F. MCCUMBER, 

Clerk. 


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