| **National Center    for     Health Statistics            Division of Data     Services            6525 Belcrest Road     Hyattsville, MD     20782-2003     (301)458-4636      **

 
****Public Health Data Standards Consortium**NCHS Home | About US | What's New | Organizational StructureTo Join | Meetings | Workshops | Contacts | Links | Search NCHS | Contact us**
**Issued:  May 1, 2000****Background**On November 2-3, 1998, the National Center    for Health Statistics (NCHS) of the Centers for Disease Control and Prevention, in    conjunction with the Agency for Healthcare Research and Quality (AHRQ) and the National    Committee on Vital and Health Statistics (NCVHS), convened a workshop to examine the    implications of the Health Insurance Portability and Accountability Act of 1996 (HIPAA)    for the practice of public health and health services research. The workshop, "The    Implications of HIPAA’s Administrative Simplification Provisions for Public Health    and Health Services Research," brought together 85 leaders in health statistics,    research, and informatics to examine the challenges and opportunities presented by HIPAA.**Call for a Consortium**    Workshop participants developed consensus recommendations for establishing a consortium to    organize the public health and health services research communities on data standards    issues. This consortium, officially established in January 1999 as the Public Health Data    Standards Consortium, serves as a mechanism for ongoing representation of public health    and health services research interests in HIPAA implementation and other data standards    setting processes.**Goals of the Consortium**Improve the health and health    care of the population through improved information.Convene    local, State, and national public health and health services research entities around data    standards issues, utilizing existing organizations to facilitate communication and    disseminate information.Identify    high-priority data needs that can be met through the HIPAA transaction and clinical    standards as well as other standards setting processes (e.g., ANSI X12 and HL7).Encourage    participation and seek formal representation on data content committees (e.g., National    Uniform Billing Committee and National Uniform Claim Committee).Educate    the public health and health services research communities about standards issues.Promote    efforts to assure continued access to health care information by public health and health    services researchers, with the appropriate safeguards for confidentiality of individually    identifiable data.

**Proposed Mission Statement**    The PHDSC will improve the health and health care of the population through improved    information by expanding involvement in existing health data standards and content    organizations. The Consortium will facilitate the use of existing standards and the    development of new data standards for public health and all areas of health services    research. The Consortium will also help to educate the public health and the health    services research communities about HIPAA and other health data standards issues.

**Scope of Data Interests**    All public health dataHIPAA    claims related data (e.g., discharge data)Birth    and death dataDisease    registry and surveillance dataImmunization    dataBirth    defects dataEt    cetera

**Operating PrinciplesView/download PDF** 24 KB

**Membership**    Representation from membership on steering committeeState-based    public health data organizations (e.g., NAHDO, NAPHSIS, CSTE, ASTHO, NACCHO,    and PHF)Research    community (e.g., AHSR)Federal    public health representatives (e.g., CDC, AHRQ, and HCFA)    Form partnerships with other organizationsManaged    Care OrganizationsBusiness    coalitionsOthers

****Sample Article****(A template for your use    in promoting the Consortium within your Organization)**View/download PDF** 14 KB

**Priorities and Action Items****Inventory** of current content requirements for State hospital discharge    databases and other encounter databases:Identification    of high-priority data elements for inclusion in the claim and claim attachment standardInclusion    of the data elements in an Information Model such as the HL7 Reference Information Model    (RIM)**Development** of a user-friendly Data Dictionary to help communicate the    content of standard claims-related transactions to a variety of nontechnical audiences**Formation** of Work Groups to advance the Consortium’s mission through    coordinating and implementing specifically identified projects**Communications**:Listserv:    PH-CONSORTIUM-LWeb    site: http://www.cdc.gov/nchs/otheract/phdsc/phdsc.htm Sponsorship    of educational teleconferenceDissemination    of educational material**Education**:    Collaboration and coordination of public health and health services research efforts to    promote an understanding of:the    importance of critical improvements in data collection processes to ensure that public    health and health services research organizations obtain the highest quality data possiblethe    importance of closing critical gaps between the national HIPAA standards and the    Federal    and State reporting needs for encounter data**Representation**:Continued    participation in both the **National Uniform Billing    Committee** (NUBC) and **National Uniform    Claim Committee** (NUCC) by the Consortium’s State and    Federal    representation (obtained in 1999).Increase    participation in and membership to the SDO’s HL7 and X12
****Accomplishments**The Consortium held its    first meeting on January 24-25, 1999, in conjunction with the annual meeting of the    National Association of Health Data Organizations (NAHDO). Many important activities    continued through 1999 and into 2000 for the Consortium. The National Uniform Billing    Committee and National Uniform Claim Committee both approved Consortium representation on    their respective committees. In September 1999, NCHS contracted with NAHDO to assist in    identifying the priority encounter data elements that are most urgent to the needs of    public health and health services research. NAHDO presented its preliminary findings at a    meeting of the Consortium Steering Committee on March 21, 2000. Several work groups were    established to address the data elements ranked of highest priority by meeting    participants. The Work Groups will assist NAHDO in its current NCHS study, and develop the    business cases for requesting specific data elements be added to the national HIPAA    Standards and Implementation Guides. The meeting generated the commitment by    organizational members to each name a Principal Member and an Alternate to the    Consortium’s Steering Committee; a Planning Group also was established.

As part of the NAHDO contract, an    educational teleconference was held on December 7, 1999, that addressed HIPAA and data    standards. The teleconference was an overwhelming success with more than 100 participants.    In recognition of the important role of education in the Consortium’s goals, a    standing Education Work Group was established at the March 21, 2000, Steering Committee    meeting to develop and implement an educational strategy for the Consortium.

**Future Meetings**Periodic    conference callsThe    next meeting of the Consortium Steering Committee tentatively is scheduled for March    19-20, 2001.

**Contacts**    Marjorie S. Greenberg    Phone: 301-458-4245    Email:  **[email protected]**

Suzie Burke-Bebee    Phone: 301-458-4125    Email: **[email protected]**

 
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This page last reviewed July 25, 2000

**U.S.    DEPARTMENT OF HEALTH AND HUMAN SERVICES****Centers    for Disease Control and Prevention**    National Center for Health Statistics    Division of Data Services     Hyattsville, MD    20782-2003    (301) 458-4636
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