I 

118TH CONGRESS 

1ST SESSION H. R. 1114 

To provide for optimized care, a coordinated Federal Government response, 

public education, and insurance reimbursement guidance for Long 

COVID, and for other purposes. 

IN THE HOUSE OF REPRESENTATIVES 

FEBRUARY 21, 2023 

Ms. BLUNT ROCHESTER (for herself, Mr. BEYER, and Ms. PRESSLEY) introduced the following bill; which was referred to the Committee on Energy 

and Commerce 

A BILL 

To provide for optimized care, a coordinated Federal Government response, public education, and insurance reimbursement guidance for Long COVID, and for other 

purposes. 

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled, 

3 SECTION 1. SHORT TITLE; TABLE OF CONTENTS. 

4 (a) SHORT TITLE.—This Act may be cited as 

5 the‘‘Long COVID Response is Care Optimized and Vitally 

6 Essential Resources that Yield New Opportunities for 

7 Wellness Act’’ or the ‘‘Long COVID RECOVERY NOW 

8 Act’’. 


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1 (b) TABLE OF CONTENTS.—The table of contents for 

2 this Act is as follows: 

Sec. 1. Short title; table of contents. 

Sec. 2. Targeting resources for equitable access to treatment of Long COVID. 

Sec. 3. National Long COVID technical assistance dissemination program. 

Sec. 4. Mental health and suicide prevention and treatment. 

Sec. 5. ONC best practices for Long COVID data. 

Sec. 6. Long COVID Education Website. 

Sec. 7. Providing Support for Long COVID Registries. 

Sec. 8. Medicaid Health Homes for Individuals with Long COVID. 

Sec. 9. State health officials guidance. 

Sec. 10. Support under Medicaid for State Collection of Long COVID Data. 

Sec. 11. Grants for Pediatric Research on Long COVID. 

3 SEC. 2. TARGETING RESOURCES FOR EQUITABLE ACCESS 

4 TO TREATMENT OF LONG COVID. 

5 (a) ESTABLISHMENT.— 

6 (1) IN GENERAL.—Not later than 1 year after 

7 the date of the enactment of this Act, the Secretary 

8 of Health and Human Services shall award, subject 

9 to subsection (f) and in accordance with the provi10 sions of this section, grants described in the fol11 lowing subsections to carry out the purposes de12 scribed in such subsections. 

13 (2) ELIGIBILITY.—The Secretary may establish 

14 a process for evaluating and determining the eligi15 bility of Federally qualified health centers and rural 

16 health clinics for receiving a grant under this sec17 tion. 

18 (b) GRANTS TO FQHCS AND RHCS.—For purposes 

19 of subsection (a), the grants described in this subsection 

20 are grants to Federally qualified health centers (as defined 


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1 in section 1861(aa)(4) of the Social Security Act (42 

2 U.S.C. 1395x(aa)(4)) and rural health clinics (as defined 

3 in section 1861(aa)(2) of such Act (42 U.S.C. 

4 1395x(aa)(2)) to— 

5 (1) adopt evidence-based Long COVID clinical 

6 practices that have been demonstrated to improve 

7 the wellness of individuals with Long COVID, in8 cluding clinical validation of patient reported symp9 toms using established measures that yield struc10 tured, comparable data; 

11 (2) establish or expand screening, referral, and 

12 navigation processes for health-related social needs 

13 that could interfere with Long COVID treatment, 

14 including food insecurity, housing instability, trans15 portation needs, utility difficulties, and interpersonal 

16 safety; and 

17 (3) submit to the Secretary of Health and 

18 Human Services (in a format consistent with the 

19 standards and activities under the Data Moderniza20 tion Initiative of the Centers for Disease Control 

21 and Prevention) standardized, disaggregated, 

22 deidentified data (as specified by the Secretary) on 

23 the characteristics, diagnoses, and health care serv24 ice utilization of Long COVID patients served under 

25 such grant, including disaggregated data on Long 


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1 COVID patient characteristics, including patient 

2 age, gender, race, ethnicity, language spoken, dis3 ability status, nature and duration of validated 

4 symptoms, and other characteristics necessary to in5 form considerations for effective and equitable treat6 ment for patients with Long COVID. 

7 (c) GRANTS TO PRIMARY CARE PRACTICES.—For 

8 purposes of subsection (a), the grants described in this 

9 subsection are grants to primary care practices (other 

10 than Federally qualified health centers and rural health 

11 clinics) that satisfy such criteria as may be established by 

12 the Secretary to carry out the purposes described in para13 graphs (1) and (3) of subsection (b). 

14 (d) GRANTS FOR MULTIDISCIPLINARY TREATMENT

15 AND COORDINATION.— 

16 (1) IN GENERAL.—The Secretary of Health and 

17 Human Services (in this section referred to as the 

18 ‘‘Secretary’’) shall award grants on a competitive 

19 basis to eligible entities for the purpose of creating 

20 or enhancing capacity to treat patients with Long 

21 COVID through a multidisciplinary approach. The 

22 term ‘‘multidisciplinary’’ in this section refers to the 

23 coordinated work to provide care or treatment to a 

24 patient by physicians and other professionals, such 

25 as specialty or subspecialty providers, nurses and 


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1 nurse care coordinators, dietitians, nutritionists, so2 cial workers, behavioral health professionals, phys3 ical and occupational therapists, speech pathologists, 

4 or any professionals determined to be appropriate by 

5 the State and approved by the Administrator of the 

6 Centers for Medicare & Medicaid Services. 

7 (2) USE OF FUNDS.—An eligible entity receiv8 ing a grant under this section shall use the grant, 

9 for the purpose described in subsection (a), to— 

10 (A) enhance the capacity of one or more 

11 existing multidisciplinary Long COVID clinics 

12 to serve the Long COVID population; or 

13 (B) create one or more multidisciplinary 

14 clinics to address the physical and mental 

15 health needs of Long COVID patients. 

16 (3) ELIGIBLE ENTITIES.—To be eligible to re17 ceive a grant under this section, an entity shall be 

18 a health care provider, Federally qualified health 

19 center (as defined in section 1861(aa) of the Social 

20 Security Act (42 U.S.C. 1395x(aa))), rural health 

21 clinic, urban Indian health center, or State or local 

22 public health department, that— 

23 (A)(i) operates an existing multidisci24 plinary Long COVID clinic or other specialized 

25 Long COVID program; or 


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1 (ii) is an existing health care provider with 

2 experience providing care for individuals with 

3 Long COVID and who demonstrates an intent 

4 to create a multidisciplinary Long COVID clinic 

5 or other specialized Long COVID program; 

6 (B) submits to the Secretary an applica7 tion at such time, in such manner, and con8 taining such information and assurances as the 

9 Secretary may require; and 

10 (C) employs a framework that incentivizes 

11 participants to attain the program’s goals to es12 tablish and disseminate best practices, and allo13 cates funds based on such attainment. 

14 (4) SPECIAL RULE.—A physical clinical facility 

15 is not a requirement for eligibility. 

16 (5) PRIORITY.—In awarding grants under this 

17 subsection, the Secretary shall give priority to eligi18 ble entities that— 

19 (A) submit a plan to engage with medically 

20 underserved communities, and with populations 

21 disproportionately impacted by COVID–19; 

22 (B) demonstrate capacity (or an intent to 

23 build capacity) to provide personalized treat24 ment and facilitate patient access to multidisci25 plinary health care providers with expertise in 


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1 treating Long COVID symptoms, including 

2 such providers who are primary and specialty 

3 care physicians (such as physiatrists, neurolo4 gists, cardiologists, immunologists, and 

5 pulmonologists), therapists, nurses, care coordi6 nators, social workers, nutritionists, and behav7 ioral health specialists; and 

8 (C) submit a plan to ensure ongoing multi9 disciplinary continuing education on infection10 triggered conditions for— 

11 (i) physicians treating Long COVID; 

12 and 

13 (ii) other physicians and health care 

14 workers who are not treating Long 

15 COVID, but are otherwise serving patients 

16 in the community. 

17 (e) EQUITABLE ACCESS.—In order to ensure equi18 table access treatment— 

19 (1) no grantee under this section shall deny ac20 cess to treatment with respect to Long COVID 

21 based on insurance coverage, date of diagnosis, or 

22 previous hospitalization; 

23 (2) a grantee under this section shall with re24 spect to Long COVID— 


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1 (A) offer equity-centered resources (such 

2 as the ability to offer resources in various lan3 guages), information, and training to safety net 

4 health systems; and 

5 (B) disseminate to individuals and organi6 zations that provide care best practices and 

7 treatment approaches that enhance access to 

8 high-quality care to everyone where they live; 

9 and 

10 (3) treatment for Long COVID shall be in11 cluded as a COVID–19 treatment, consistent with 

12 the American Rescue Plan Act of 2021 (Public Law 

13 117–2). 

14 (f) DEVELOPMENT OF EVIDENCE-BASED STRATE15 GIES FOR HIGH-VALUE CARE FOR INDIVIDUALS WITH

16 LONG COVID.— 

17 (1) IN GENERAL.—Not later than 1 year after 

18 the date of the enactment of this Act, the Agency 

19 for Healthcare Research and Quality shall, subject 

20 to appropriations pursuant to subsection (i), award 

21 multi-year grants to eligible entities meeting such 

22 criteria as specified by the Secretary through rule23 making for the purposes of— 

24 (A) supporting the generation of evidence 

25 about how to deliver high quality, high-value 


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1 health care for individuals with Long COVID 

2 for the treatment of the condition; 

3 (B) creating tools and strategies to help 

4 health systems and hospitals, primary and spe5 cialty physicians, nurses, allied health care pro6 fessionals, and caregivers provide high-quality, 

7 high-value care for individuals with Long 

8 COVID; and 

9 (C) providing educational materials for 

10 health care providers, payers, and consumers on 

11 high-value care for individuals with Long 

12 COVID. 

13 (2) ELIGIBILITY.—The Secretary shall, through 

14 rulemaking, specify a process for evaluating and de15 termining the eligibility of primary care providers in16 cluding Federally qualified health centers and rural 

17 health clinics; specialty care providers, hospitals, 

18 health systems, academic medical centers; and other 

19 entities for receiving a grant under this subsection. 

20 Such rules shall prohibit grant funds from being 

21 used to compensate or reimburse individuals or orga22 nizations excluded pursuant to section 1128 of the 

23 Social Security Act (42 U.S.C. 1320a–7) from par24 ticipation under the Medicare program under title 

25 XVIII of such Act. 


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1 (g) LONG COVID DEFINED.—For purposes of this 

2 Act, the term ‘‘Long COVID’’ (also referred to as ‘‘post3 acute sequelae of COVID–19’’, ‘‘post-COVID conditions’’, 

4 or ‘‘persistent symptoms post-COVID’’) means the ongo5 ing sequelae of COVID–19 that some individuals experi6 ence after infection with the SARS–CoV–2 virus, as diag7 nosed by a qualified health care provider. Such sequelae 

8 are defined as the ‘‘Post-COVID Conditions’’ identified 

9 and defined by the Centers for Disease Control and Pre10 vention in 2021, or in subsequent revisions by the Centers 

11 for Disease Control and Prevention. 

12 (h) REPORTS.— 

13 (1) ANNUAL REPORTS BY GRANTEES TO SEC14 RETARY.—On an annual basis, a recipient of a grant 

15 under this section shall— 

16 (A) submit to the Secretary, and make 

17 publicly available, a report on the activities car18 ried out through the grant; and 

19 (B) include evaluations of such activities, 

20 including the experience of individuals who re21 ceived health care through such grant. 

22 (2) ANNUAL REPORTS BY SECRETARY TO CON23 GRESS.—Not later than the end of each of fiscal 

24 years 2024 through 2026, the Secretary shall submit 


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1 to the Congress, and make publicly available, a re2 port that— 

3 (A) summarizes the reports received under 

4 paragraph (1); 

5 (B) evaluates the effectiveness of grants 

6 under this section; and 

7 (C) makes recommendations with respect 

8 to expanding coverage for clinical care for Long 

9 COVID. 

10 (i) AUTHORIZATION OF APPROPRIATIONS.— 

11 (1) IN GENERAL.—To carry out this section, 

12 there are authorized to be appropriated such sums 

13 as may be necessary for each of fiscal years 2024 

14 through 2026. 

15 (2) ADMINISTRATIVE EXPENSES.—Not more 

16 than 15 percent of the amounts made available to 

17 carry out this section for any fiscal year may be 

18 used for administrative expenses to operate the 

19 grants under this section. 

20 SEC. 3. NATIONAL LONG COVID TECHNICAL ASSISTANCE 

21 DISSEMINATION PROGRAM. 

22 (a) IN GENERAL.—The Secretary of Health and 

23 Human Services shall— 

24 (1) establish a structured process to seek ongo25 ing input from medical societies representing priVerDate Sep 11 2014 03:36 Mar 10, 2023 Jkt 039200 PO 00000 Frm 00011 Fmt 6652 Sfmt 6201 E:\BILLS\H1114.IH H1114

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1 mary care, specialty care, and subspecialty care re2 garding the proven and promising practices for 

3 treating individuals who are diagnosed with Long 

4 COVID to support their wellness and recovery; and 

5 (2) enter into a memorandum of understanding 

6 with one or more organizations with specific medical 

7 knowledge on Long COVID or experience providing 

8 care and medical treatment to individuals with Long 

9 COVID to support the ongoing dissemination to the 

10 broader medical community of existing open source 

11 evidence, tools and strategies. 

12 (b) ORGANIZATION DESCRIBED.—For purposes of 

13 subsection (a), and organization described in this para14 graph is an organization that satisfies at least the fol15 lowing: 

16 (1) The organization has clinical expertise re17 lated to the treatment of Long COVID. 

18 (2) The organization has a robust under19 standing of clinical and business practices. 

20 (3) The organization has the ability to convene 

21 groups and disseminate information nationally. 

22 (4) The organization consults with medical spe23 cialty associations for purposes of developing and 

24 distributing clinical best practices for Long COVID 

25 diagnosis and treatment. 


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1 SEC. 4. MENTAL HEALTH AND SUICIDE PREVENTION AND 

2 TREATMENT. 

3 Section 1911(b)(1) of the Public Health Service Act 

4 (42 U.S.C. 300x(b)(1)) is amended by inserting ‘‘and, for 

5 each of fiscal years 2024 through 2026, individuals with 

6 Long COVID (as defined in section 2 of the Long COVID 

7 RECOVERY NOW Act) who have also been diagnosed 

8 with a mental health condition (such as a serious mental 

9 illness or a serious emotional disturbance)’’ after 

10 ‘‘1912(c)’’. 

11 SEC. 5. ONC BEST PRACTICES FOR LONG COVID DATA. 

12 (a) IN GENERAL.—Not later than 6 months after the 

13 date of the enactment of this Act, the Secretary of Health 

14 and Human Services, acting through the National Coordi15 nator for Health Information Technology, shall convene 

16 health care stakeholders to identify potential best prac17 tices for collecting, aggregating, and disseminating to 

18 health care researchers deidentified data that promotes 

19 learning about Long COVID and supports the further re20 search of the characteristics of individuals diagnosed with 

21 Long COVID. 

22 (b) REPORT.—Not later than 160 days after the first 

23 meeting of such stakeholders pursuant to subsection (a), 

24 the Secretary shall submit to Congress (and make publicly 

25 available on the website of the Office of the National Coor26 dinator of Health Information Technology) a report sumVerDate Sep 11 2014 03:36 Mar 10, 2023 Jkt 039200 PO 00000 Frm 00013 Fmt 6652 Sfmt 6201 E:\BILLS\H1114.IH H1114

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1 marizing the meetings and findings of the stakeholders as 

2 well as any recommendations, including recommendations 

3 on ways that federal health care policy can better support 

4 an understanding of the etiology, characteristics, care and 

5 potential treatments for individuals Long COVID to sup6 port individuals’ recovery and wellness. Such recommenda7 tions shall— 

8 (1) take into account the perspectives of health 

9 data scientists, health services researchers, medical 

10 providers, health plans, hospitals and health sys11 tems, epidemiologists, public health experts, patient 

12 representatives and groups, health information tech13 nology companies, and other stakeholders; and 

14 (2) be informed by public and private sector ef15 forts to characterize Long COVID, aggregate and 

16 disaggregate data, and promote data standardiza17 tion, data standards, or open data access for fur18 thering a greater understanding of Long COVID. 

19 SEC. 6. LONG COVID EDUCATION WEBSITE. 

20 Not later than 6 months after the date of the enact21 ment of this Act, the Secretary of Health and Human 

22 Services shall, in consultation with medical societies rep23 resenting the perspectives of primary care, specialty care, 

24 mental health professionals, medical researchers (includ25 ing through the National Institutes of Health), public 


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1 health experts (including the Centers for Disease Control 

2 and Prevention), and patient advocates, implement a Fed3 eral website (which may be implemented through an exist4 ing public website of the Department of Health and 

5 Human Services) that— 

6 (1) collects, and curates educational materials 

7 for health care providers and consumers about Long 

8 COVID (as defined in section 2(e)) symptoms, diag9 nosis, characteristics, treatment, and access to care; 

10 and 

11 (2) includes, or provides a link to, comprehen12 sive educational resources for health care providers, 

13 such as the interim guidance (and subsequent up14 dates) for health care providers published by the 

15 Centers for Disease Control and Prevention on how 

16 to treat individuals with Long COVID. 

17 SEC. 7. PROVIDING SUPPORT FOR LONG COVID REG18 ISTRIES. 

19 (a) IN GENERAL.—Not later than one year after the 

20 date of the enactment of this Act, the Secretary of Health 

21 and Human Services, acting through the Director of the 

22 Agency for Healthcare Research and Quality shall, subject 

23 to appropriations pursuant to subsection (d), award multi24 year grants to eligible entities described in subsection (b) 

25 for the purposes of— 


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1 (1) supporting existing or creating new Longi2 tudinal registries of patients with Long COVID (as 

3 defined in section 2(g)); 

4 (2) establishing voluntary standards for such 

5 registries that include common data elements and 

6 clear data definitions to enable the comparability 

7 and synchronization of data by researchers; 

8 (3) utilize data from such registries to help in9 form understanding regarding the efficacy of care, 

10 diagnostics, therapeutics, care pathways, behavioral 

11 health interventions, and other dynamics regarding 

12 individuals with Long COVID; and 

13 (4) informing health care providers’ efforts re14 lated to improving equitable access to health care by 

15 collecting data through such registries from individ16 uals with Long COVID, including social needs, med17 ical history, race and ethnicity, language, gender, 

18 and disability status, as specified by the Secretary of 

19 Health and Human Services. 

20 (b) ELIGIBLE ENTITIES.— 

21 (1) IN GENERAL.—To be eligible for a grant 

22 under subsection (a) an entity shall— 

23 (A) submit an application to the Secretary 

24 in such form and manner as the Secretary may 

25 require; 


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1 (B) agree to adhere to such data defini2 tions and standards as the Secretary may re3 quire, including privacy and security require4 ments, requirements to make findings of the or5 ganization, and the use of open-source tech6 nology to promote the dissemination of informa7 tion related to Long COVID; 

8 (C) agree to make any information col9 lected or produced by the entity pursuant to the 

10 grant available to the public through secure, 

11 non-proprietary means without a paywall or fee; 

12 (D) demonstrate to the Secretary, in a 

13 form and manner specified by the Secretary, 

14 that the entity has in place appropriate stand15 ards for handling proprietary, confidential, and 

16 medical information securely and in a manner 

17 that is compliant with applicable law; 

18 (E) have in place and demonstrate to the 

19 Secretary the adequacy of a plan for the 

20 Longer-term financial sustainability of such 

21 registry; and 

22 (F) be an organization described in para23 graph (2). 


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1 (2) ORGANIZATIONS.—For purposes of para2 graph (1), an organization described in this para3 graph is any of the following: 

4 (A) A non-profit organization representa5 tive of individuals with Long COVID. 

6 (B) An organization of health care pro7 viders, such as health systems and hospitals. 

8 (C) An organization of data scientists. 

9 (D) Multi-sector groups that consist of or10 ganizations described in 2 or more of the pre11 ceding subparagraphs that meet such standards 

12 as the Secretary may require. 

13 (c) CONSIDERATION.—In carrying out the purposes 

14 described in subsection (a), an eligible entity shall take 

15 into consideration the report made available under section 

16 4(b). 

17 (d) AUTHORIZATION OF APPROPRIATIONS.—There is 

18 authorized to be appropriated to carry out this section 

19 $10,000,000 for each of fiscal years 2024 through 2028. 

20 SEC. 8. MEDICAID HEALTH HOMES FOR INDIVIDUALS WITH 

21 LONG COVID. 

22 (a) HEALTH HOMES FOR INDIVIDUALS WITH

23 CHRONIC CONDITIONS.—Section 1945(h)(1)(A)(ii) of the 

24 Social Security Act (42 U.S.C. 1396w–4(h)(1)(A)(ii)) is 

25 amended— 


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1 (1) in subclause (II), by striking at the end 

2 ‘‘or’’; 

3 (2) in subclause (III), by striking at the end the 

4 period and inserting ‘‘; or’’; and 

5 (3) by adding at the end the following new sub6 clause: 

7 ‘‘(IV) Long COVID (as defined 

8 in section 2(g) of the Long COVID 

9 RECOVERY NOW Act).’’. 

10 (b) HEALTH HOMES FOR CHILDREN WITH MEDI11 CALLY COMPLEX CONDITIONS.—Section 

12 1945A(i)(1)(A)(ii) of the Social Security Act (42 U.S.C. 

13 1396w–4a(i)(1)(A)(ii)) is amended— 

14 (1) in subclause (I), by striking at the end 

15 ‘‘or’’; 

16 (2) in subclause (II), by striking at the end the 

17 period and inserting ‘‘; or’’; and 

18 (3) by adding at the end the following new sub19 clause: 

20 ‘‘(III) Long COVID (as defined 

21 in section 2(g) of the Long COVID 

22 RECOVERY NOW Act).’’. 

23 SEC. 9. STATE HEALTH OFFICIALS GUIDANCE. 

24 Not later than 18 months after the date of the enact25 ment of this Act, the Secretary of Health and Human 


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1 Services shall issue guidance to State health officials speci2 fying tools and strategies that may help States improve 

3 the health and wellness of individuals enrolled under the 

4 Medicaid program under title XIX of the Social Security 

5 Act or the Children’s Health Insurance Program under 

6 title XXI of such Act who have been diagnosed with Long 

7 COVID by facilitating strong primary care and supporting 

8 linkages to specialists, relevant social supports, or commu9 nity-based organizations at the local level, that can help 

10 support the recovery and wellness of such individuals. 

11 SEC. 10. SUPPORT UNDER MEDICAID FOR STATE COLLEC12 TION OF LONG COVID DATA. 

13 Section 1903(a)(3) of the Social Security Act (42 

14 U.S.C. 1396b(a)(3)) is amended by adding at the end the 

15 following new subparagraph: 

16 ‘‘(I) 75 percent of the sums expended during a 

17 fiscal year quarter in 2024, 2025, or 2026 as are at18 tributable to the collection and reporting of claims 

19 and encounter data on Long COVID (including 

20 identification of race, language, ethnicity, and dura21 tion of treatment) using the ICD–10 code U09.9 

22 post COVID–19 condition, unspecified (or any suc23 cessor to such code);’’. 


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1 SEC. 11. GRANTS FOR PEDIATRIC RESEARCH ON LONG 

2 COVID. 

3 (a) IN GENERAL.—The Secretary of Health and 

4 Human Services, acting through the Director of the Na5 tional Institutes of Health (in this section, referred to as 

6 the ‘‘Secretary’’), shall award grants to eligible entities to 

7 conduct research on Long COVID in pediatric popu8 lations. 

9 (b) USE OF FUNDS.—An eligible entity selected to 

10 receive a grant under this subsection may use funds re11 ceived through the grant to conduct research described in 

12 subsection (a), with a focus on pediatric immune system 

13 responses and neurodevelopment. 

14 (c) ELIGIBLE ENTITY DEFINED.—In this section, the 

15 term ‘‘eligible entity’’ means a children’s hospital, pedi16 atric researcher, pediatrician, academic medical center, or 

17 other organization determined appropriate by the Sec18 retary. 

19 (d) AUTHORIZATION OF APPROPRIATIONS.—To carry 

20 out this section, there are authorized to be appropriated 

21 such sums as may be necessary for each of fiscal years 

22 2024 through 2026. 

Æ 


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