`[Congressional Bills 109th Congress]
[From the U.S. Government Publishing Office]
[H.R. 3248 Reported in House (RH)]






                                                 Union Calendar No. 428
109th CONGRESS
  2d Session
                                H. R. 3248

                          [Report No. 109-716]

To amend the Public Health Service Act to establish a program to assist 
  family caregivers in accessing affordable and high-quality respite 
                     care, and for other purposes.


_______________________________________________________________________


                    IN THE HOUSE OF REPRESENTATIVES

                             July 12, 2005

 Mr. Ferguson (for himself, Mr. Langevin, Mr. Terry, Mr. Norwood, Mrs. 
 Wilson of New Mexico, and Mr. Brown of Ohio) introduced the following 
    bill; which was referred to the Committee on Energy and Commerce

                            December 5, 2006

Additional sponsors: Mr. Larson of Connecticut, Mr. Andrews, Mr. Wolf, 
Mr. Pascrell, Mr. Larsen of Washington, Mr. Emanuel, Ms. Jackson-Lee of 
    Texas, Mr. Menendez, Mr. DeFazio, Mr. Sanders, Mr. Pallone, Mr. 
 Gutierrez, Mr. Wu, Ms. Loretta Sanchez of California, Mr. Reyes, Mr. 
Lynch, Mr. Van Hollen, Mr. Hinchey, Mr. Ramstad, Mr. Doyle, Ms. Roybal-
    Allard, Mr. Bishop of Georgia, Mr. Boehlert, Mr. McDermott, Mr. 
Strickland, Mr. Melancon, Mr. Price of North Carolina, Mr. Platts, Mrs. 
Capps, Mr. Walden of Oregon, Mr. Schwarz of Michigan, Ms. Berkley, Ms. 
 Slaughter, Mr. Shimkus, Ms. Baldwin, Mr. Snyder, Mr. Abercrombie, Ms. 
 Herseth, Mrs. Davis of California, Mr. Renzi, Mr. Holt, Mr. Rothman, 
 Mr. Baird, Mr. Nadler, Mr. Kucinich, Mr. Schiff, Ms. Schakowsky, Mr. 
 Michaud, Mr. Shays, Mr. Kind, Mr. Rahall, Mr. Bonner, Mr. Souder, Mr. 
Bachus, Mr. Fattah, Mr. Waxman, Mr. Gene Green of Texas, Mr. McIntyre, 
Mrs. Jones of Ohio, Ms. Eshoo, Mr. Moore of Kansas, Mr. Blumenauer, Mr. 
 Kirk, Ms. Zoe Lofgren of California, Mr. Cardin, Mrs. Jo Ann Davis of 
 Virginia, Mr. Goode, Mr. Burgess, Mr. Boucher, Mr. Scott of Virginia, 
Mr. Ford, Mrs. Maloney, Mr. Rogers of Michigan, Mr. Wynn, Mr. Peterson 
   of Minnesota, Mr. Ruppersberger, Ms. Hooley, Mr. Kennedy of Rhode 
                         Island, and Mr. Payne

                            December 5, 2006

  Reported with an amendment, committed to the Committee of the Whole 
       House on the State of the Union, and ordered to be printed
 [Strike out all after the enacting clause and insert the part printed 
                               in italic]
 [For text of introduced bill, see copy of bill as introduced on July 
                               12, 2005]

_______________________________________________________________________

                                 A BILL



To amend the Public Health Service Act to establish a program to assist 
  family caregivers in accessing affordable and high-quality respite 
                     care, and for other purposes.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Lifespan Respite Care Act of 2006''.

SEC. 2. LIFESPAN RESPITE CARE.

    The Public Health Service Act (42 U.S.C. 201 et seq.) is amended by 
adding at the end the following:

                  ``TITLE XXIX--LIFESPAN RESPITE CARE

``SEC. 2901. DEFINITIONS.

    ``In this title:
            ``(1) Adult with a special need.--The term `adult with a 
        special need' means a person 18 years of age or older who 
        requires care or supervision to--
                    ``(A) meet the person's basic needs;
                    ``(B) prevent physical self-injury or injury to 
                others; or
                    ``(C) avoid placement in an institutional facility.
            ``(2) Aging and disability resource center.--The term 
        `aging and disability resource center' means an entity 
        administering a program established by the State, as part of 
        the State's system of long-term care, to provide a coordinated 
        system for providing--
                    ``(A) comprehensive information on available public 
                and private long-term care programs, options, and 
                resources;
                    ``(B) personal counseling to assist individuals in 
                assessing their existing or anticipated long-term care 
                needs, and developing and implementing a plan for long-
                term care designed to meet their specific needs and 
                circumstances; and
                    ``(C) consumer access to the range of publicly 
                supported long-term care programs for which consumers 
                may be eligible, by serving as a convenient point of 
                entry for such programs.
            ``(3) Child with a special need.--The term `child with a 
        special need' means an individual less than 18 years of age who 
        requires care or supervision beyond that required of children 
        generally to--
                    ``(A) meet the child's basic needs; or
                    ``(B) prevent physical injury, self-injury, or 
                injury to others.
            ``(4) Eligible state agency.--The term `eligible State 
        agency' means a State agency that--
                    ``(A) administers the State's program under the 
                Older Americans Act of 1965, administers the State's 
                program under title XIX of the Social Security Act, or 
                is designated by the Governor of such State to 
                administer the State's programs under this title;
                    ``(B) is an aging and disability resource center;
                    ``(C) works in collaboration with a public or 
                private nonprofit statewide respite care coalition or 
                organization; and
                    ``(D) demonstrates--
                            ``(i) an ability to work with other State 
                        and community-based agencies;
                            ``(ii) an understanding of respite care and 
                        family caregiver issues across all age groups, 
                        disabilities, and chronic conditions; and
                            ``(iii) the capacity to ensure meaningful 
                        involvement of family members, family 
                        caregivers, and care recipients.
            ``(5) Family caregiver.--The term `family caregiver' means 
        an unpaid family member, a foster parent, or another unpaid 
        adult, who provides in-home monitoring, management, 
        supervision, or treatment of a child or adult with a special 
        need.
            ``(6) Lifespan respite care.--The term `lifespan respite 
        care' means a coordinated system of accessible, community-based 
        respite care services for family caregivers of children or 
        adults with special needs.
            ``(7) Respite care.--The term `respite care' means planned 
        or emergency care provided to a child or adult with a special 
        need in order to provide temporary relief to the family 
        caregiver of that child or adult.
            ``(8) State.--The term `State' means any of the several 
        States, the District of Columbia, the Virgin Islands of the 
        United States, the Commonwealth of Puerto Rico, Guam, American 
        Samoa, and the Commonwealth of the Northern Mariana Islands.

``SEC. 2902. LIFESPAN RESPITE CARE GRANTS AND COOPERATIVE AGREEMENTS.

    ``(a) Purposes.--The purposes of this section are--
            ``(1) to expand and enhance respite care services to family 
        caregivers;
            ``(2) to improve the statewide dissemination and 
        coordination of respite care; and
            ``(3) to provide, supplement, or improve access and quality 
        of respite care services to family caregivers, thereby reducing 
        family caregiver strain.
    ``(b) Authorization.--Subject to subsection (e), the Secretary is 
authorized to award grants or cooperative agreements for the purposes 
described in subsection (a) to eligible State agencies for which an 
application is submitted pursuant to subsection (d).
    ``(c) Federal Lifespan Approach.--In carrying out this section, the 
Secretary shall work in cooperation with the National Family Caregiver 
Support Program of the Administration on Aging and other respite care 
programs within the Department of Health and Human Services to ensure 
coordination of respite care services for family caregivers of children 
and adults with special needs.
    ``(d) Application.--
            ``(1) Submission.--Each Governor desiring the eligible 
        State agency of his or her State to receive a grant or 
        cooperative agreement under this section shall submit an 
        application on behalf of such agency to the Secretary at such 
        time, in such manner, and containing such information as the 
        Secretary shall require.
            ``(2) Contents.--Each application submitted under this 
        section shall include--
                    ``(A) a description of the eligible State 
                agency's--
                            ``(i) ability to work with other State and 
                        community-based agencies;
                            ``(ii) understanding of respite care and 
                        family caregiver issues across all age groups, 
                        disabilities, and chronic conditions; and
                            ``(iii) capacity to ensure meaningful 
                        involvement of family members, family 
                        caregivers, and care recipients;
                    ``(B) with respect to the population of family 
                caregivers to whom respite care information or services 
                will be provided or for whom respite care workers and 
                volunteers will be recruited and trained, a description 
                of--
                            ``(i) the population of family caregivers;
                            ``(ii) the extent and nature of the respite 
                        care needs of that population;
                            ``(iii) existing respite care services for 
                        that population, including numbers of family 
                        caregivers being served and extent of unmet 
                        need;
                            ``(iv) existing methods or systems to 
                        coordinate respite care information and 
                        services to the population at the State and 
                        local level and extent of unmet need;
                            ``(v) how respite care information 
                        dissemination and coordination, respite care 
                        services, respite care worker and volunteer 
                        recruitment and training programs, or training 
                        programs for family caregivers that assist such 
                        family caregivers in making informed decisions 
                        about respite care services will be provided 
                        using grant or cooperative agreement funds;
                            ``(vi) a plan for administration, 
                        collaboration, and coordination of the proposed 
                        respite care activities with other related 
                        services or programs offered by public or 
                        private, nonprofit entities, including area 
                        agencies on aging;
                            ``(vii) how the population, including 
                        family caregivers, care recipients, and 
                        relevant public or private agencies, will 
                        participate in the planning and implementation 
                        of the proposed respite care activities;
                            ``(viii) how the proposed respite care 
                        activities will make use, to the maximum extent 
                        feasible, of other Federal, State, and local 
                        funds, programs, contributions, other forms of 
                        reimbursements, personnel, and facilities;
                            ``(ix) respite care services available to 
                        family caregivers in the eligible State 
                        agency's State or locality, including unmet 
                        needs and how the eligible State agency's plan 
                        for use of funds will improve the coordination 
                        and distribution of respite care services for 
                        family caregivers of children and adults with 
                        special needs;
                            ``(x) the criteria used to identify family 
                        caregivers eligible for respite care services;
                            ``(xi) how the quality and safety of any 
                        respite care services provided will be 
                        monitored, including methods to ensure that 
                        respite care workers and volunteers are 
                        appropriately screened and possess the 
                        necessary skills to care for the needs of the 
                        care recipient in the absence of the family 
                        caregiver; and
                            ``(xii) the results expected from proposed 
                        respite care activities and the procedures to 
                        be used for evaluating those results;
                    ``(C) assurances that, where appropriate, the 
                eligible State agency will have a system for 
                maintaining the confidentiality of care recipient and 
                family caregiver records; and
                    ``(D) a memorandum of agreement regarding the joint 
                responsibility for the eligible State agency's lifespan 
                respite program between--
                            ``(i) the eligible State agency; and
                            ``(ii) a public or private nonprofit 
                        statewide respite coalition or organization.
    ``(e) Priority; Considerations.--When awarding grants or 
cooperative agreements under this section, the Secretary shall--
            ``(1) give priority to eligible State agencies that the 
        Secretary determines show the greatest likelihood of 
        implementing or enhancing lifespan respite care statewide; and
            ``(2) give consideration to eligible State agencies that 
        are building or enhancing the capacity of their long-term care 
        systems to respond to the comprehensive needs, including 
        respite care needs, of their residents.
    ``(f) Use of Grant or Cooperative Agreement Funds.--
            ``(1) In general.--
                    ``(A) Required uses of funds.--Each eligible State 
                agency awarded a grant or cooperative agreement under 
                this section shall use all or part of the funds--
                            ``(i) to develop or enhance lifespan 
                        respite care at the State and local levels;
                            ``(ii) to provide respite care services for 
                        family caregivers caring for children or 
                        adults;
                            ``(iii) to train and recruit respite care 
                        workers and volunteers;
                            ``(iv) to provide information to caregivers 
                        about available respite and support services; 
                        and
                            ``(v) to assist caregivers in gaining 
                        access to such services.
                    ``(B) Optional uses of funds.--Each eligible State 
                agency awarded a grant or cooperative agreement under 
                this section may use part of the funds for--
                            ``(i) training programs for family 
                        caregivers to assist such family caregivers in 
                        making informed decisions about respite care 
                        services;
                            ``(ii) other services essential to the 
                        provision of respite care as the Secretary may 
                        specify; or
                            ``(iii) training and education for new 
                        caregivers.
            ``(2) Subcontracts.--Each eligible State agency awarded a 
        grant or cooperative agreement under this section may carry out 
        the activities described in paragraph (1) directly or by grant 
        to, or contract with, public or private entities.
            ``(3) Matching funds.--
                    ``(A) In general.--With respect to the costs of the 
                activities to be carried out under paragraph (1), a 
                condition for the receipt of a grant or cooperative 
                agreement under this section is that the eligible State 
                agency agrees to make available (directly or through 
                donations from public or private entities) non-Federal 
                contributions toward such costs in an amount that is 
                not less than 25 percent of such costs.
                    ``(B) Determination of amount contributed.--Non-
                Federal contributions required by subparagraph (A) may 
                be in cash or in kind, fairly evaluated, including 
                plant, equipment, or services. Amounts provided by the 
                Federal Government, or services assisted or subsidized 
                to any significant extent by the Federal Government, 
                may not be included in determining the amount of such 
                non-Federal contributions.
    ``(g) Term of Grants or Cooperative Agreements.--
            ``(1) In general.--The Secretary shall award grants or 
        cooperative agreements under this section for terms that do not 
        exceed 5 years.
            ``(2) Renewal.--The Secretary may renew a grant or 
        cooperative agreement under this section at the end of the term 
        of the grant or cooperative agreement determined under 
        paragraph (1).
    ``(h) Maintenance of Effort.--Funds made available under this 
section shall be used to supplement and not supplant other Federal, 
State, and local funds available for respite care services.

``SEC. 2903. NATIONAL LIFESPAN RESPITE RESOURCE CENTER.

    ``(a) Establishment.--The Secretary may award a grant or 
cooperative agreement to a public or private nonprofit entity to 
establish a National Resource Center on Lifespan Respite Care (referred 
to in this section as the `center').
    ``(b) Purposes of the Center.--The center shall--
            ``(1) maintain a national database on lifespan respite 
        care;
            ``(2) provide training and technical assistance to State, 
        community, and nonprofit respite care programs; and
            ``(3) provide information, referral, and educational 
        programs to the public on lifespan respite care.

``SEC. 2904. REPORT.

    ``Not later than January 1, 2009, the Secretary shall report to the 
Congress on the activities undertaken under this title. Such report 
shall evaluate--
            ``(1) the number of States that have lifespan respite care 
        programs;
            ``(2) the demographics of the caregivers receiving respite 
        care services through grants or cooperative agreements under 
        this title; and
            ``(3) the effectiveness of entities receiving grants or 
        cooperative agreements under this title.

``SEC. 2905. AUTHORIZATION OF APPROPRIATIONS.

    ``There are authorized to be appropriated to carry out this title--
            ``(1) $30,000,000 for fiscal year 2007;
            ``(2) $40,000,000 for fiscal year 2008;
            ``(3) $53,330,000 for fiscal year 2009;
            ``(4) $71,110,000 for fiscal year 2010; and
            ``(5) $94,810,000 for fiscal year 2011.''.
                                                 Union Calendar No. 428

109th CONGRESS

  2d Session

                               H. R. 3248

                          [Report No. 109-716]

_______________________________________________________________________

                                 A BILL

To amend the Public Health Service Act to establish a program to assist 
  family caregivers in accessing affordable and high-quality respite 
                     care, and for other purposes.

_______________________________________________________________________

                            December 5, 2006

  Reported with an amendment, committed to the Committee of the Whole 
       House on the State of the Union, and ordered to be printed`