American Indian/Alaska Native/Native Hawaiian Initiative

Fetal Alcohol Spectrum Disorders

Resource List

This list provides Native families, providers, and community members

with brief summaries of the information, resources, and services

available through Native-specific Web sites.

It also includes Web site locations and phone numbers (when available)

of national sources of information, resources, and services related to

the prevention and treatment of fetal alcohol spectrum disorders

(FASD).

For additional Federal and online resources or listings of national,

State, and international organizations related to FASD, go to

www.fasdcenter.samhsa.gov/links/links.cfm.

American Indian/Alaska Native/Native Hawaiian Resources

Alaska Federation of Natives

www.nativefederation.org, 907-274-3611

The mission of the Alaska Federation of Natives is to enhance and

promote the cultural, economic, and political role of the entire Alaska

Native community. The Web site includes information about current

programs, such as the Alaska Native Center for Excellence and the

Alaska Marketplace, as well as information about upcoming events.

Alaska Native Health Board (ANHB)

www.anhb.org, 907-562-6006

ANHB promotes the spiritual, physical, mental, social, and cultural wellbeing and pride of Alaska Native people. ANHB’s goal is to improve the

health of Alaska Natives through development of public policy at

Federal, State, and local levels. This site provides a list of related

publications and resources and information on advocacy.

Alaska Native Justice Center (ANJC)

www.anjc.org, 907-793-3550

ANJC is a nonprofit organization that strives to serve the unmet needs

of the Alaska Native community in the civil and criminal justice system.

This site lists ANJC’s contact information, history, mission, and goals.
Association of American Indian Physicians (AAIP)

www.aaip.com, 877-943-4299

AAIP is dedicated to pursuing excellence in Native American health care

by promoting education in the medical disciplines; honoring traditional

healing practices; and restoring the balance of mind, body, and spirit.

The site includes information about AAIP programs, the Indian Health

Network, and events, and it provides links to related material.

First Nations Child and Family Caring Society of Canada

(Caring Society)

www.fncfcs.com, 613-230-5885

The First Nations Child and Family Caring Society of Canada is a national

organization developed to share knowledge and to stimulate action in

aboriginal child welfare at a national level. The prime objective of the

Caring Society is to support child and family service agencies by

providing culturally relevant knowledge, skills, and resources. The Web

site includes information about projects, publications, resources, and

events. It also has a database of information on aboriginal child welfare

in Canada.

National Asian Pacific American Families Against Substance Abuse

(NAPAFASA)

www.napafasa.org, 213-625-5795 or 916-448-5911

NAPAFASA provides current information and resources on substance

abuse issues in the Asian American and Pacific Islander communities.

The site includes facts and resources, news and announcements, and

information on NAPAFASA projects and events.

National Center for American Indian and Alaska Native Mental Health

Research

www.uchsc.edu/ai/ncaianmhr/ncaianmhr_index.htm, 303-724-1414

The National Center for American Indian and Alaska Native Mental

Health Research is sponsored by the National Institute of Mental Health

and is the only program of this type in the country focusing specifically

on American Indian and Alaska Native populations. The site includes

information on research projects and staff publications.

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National Indian Child Welfare Association

www.nicwa.org, 503-222-4044

The National Indian Child Welfare Association provides public policy

research and advocacy, information and training on Indian child

welfare, and community development services. It serves a broad

national audience, including tribal governments and programs; State

child welfare agencies; and other organizations, agencies, and

professionals interested in the field of Indian child welfare. The Web

site includes listings of services and resources and information related

to policy and research.

National Indian Justice Center (NIJC)

www.nijc.org, 707-579-5507 or 800-966-0662

NIJC is an independent national resource for Native communities and

tribal governments. NIJC developed a fetal alcohol syndrome (FAS)

awareness curriculum that promotes a tribal multidisciplinary team

approach for responding to persons with FAS and alcohol-related

neurodevelopmental disorders (ARND) who are involved in the tribal

justice system as defendants, witnesses, and/or victims. The goals of this

curriculum are to increase the awareness of FAS and ARND among tribal

justice system personnel and to reduce criminal behavior among or

victimization of persons with FAS or ARND. The curriculum can be

ordered from this site.

National Indian School Board Association (NISBA)

http://nisba.skc.edu, 406-883-3603

NISBA’s mission is, in part, to support quality education in a safe

environment from early childhood through life in accordance with the

tribe’s need for cultural and economic well-being in keeping with the

wide diversity of Indian tribes and communities as distinct cultural and

governmental entities. This site lists NISBA’s contact information,

mission, and goals.

American Indian/Alaska Native/Native Hawaiian Initiative

Fetal Alcohol Spectrum Disorders

Resource List (Continued)

3
National Native American Families Together

www.nativefamilynetwork.com, 877-205-7501

The National Native American Families Together Parent Center is an

outreach project that seeks to increase partnerships between Native

American families with a child with a disability and the professionals

serving their children. The site provides access to other Native

partnerships that might be helpful to families that have a child, relative,

or friend with an FASD.

One Sky Center

www.oneskycenter.org, 503-494-3703

The One Sky Center is a resource center for American Indians and

Alaska Natives dedicated to improving the prevention and treatment of

substance abuse and mental illness. The Center identifies culturally

appropriate, effective, evidence-based substance abuse prevention and

treatment practices and disseminates this information to tribal

communities. The site provides information on services, education, news

and events, and resources.

Society for Advancement of Chicanos and Native Americans

in Science (SACNAS)

www.sacnas.org, 877-SACNAS1

SACNAS encourages Chicano/Latino and Native American students to

pursue graduate education and obtain the advanced degrees necessary

for science research, leadership, and teaching careers at all levels. The

site includes information on SACNAS programs and related publications.

The Stone Soup Group FASD Parent Support

www.stonesoupgroup.org/fas/index.html

This Web site was created for Alaskan families with children who were

exposed prenatally to alcohol. It provides information about communitybased diagnostic teams, local agencies, and programs that work with

families, children, and adults affected by fetal alcohol spectrum

disorders. It contains information on strategies for helping children with

brain-based learning differences; a list of FASD resources and support

groups; lists of books, videos, and newsletters; and links to State and

national FASD resources.

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White Bison

www.whitebison.org/home.html, 719-548-1000

White Bison offers sobriety, recovery, addiction prevention, and wellness

learning resources to the Native American community nationwide. It has

offered healing resources since 1988. The Web site includes information

about the Wellbriety Movement—a recovery process that uses the

healthy principles, laws, and values of traditional culture. The Web site

also includes a discussion board.

Federal Resources

Centers for Disease Control and Prevention (CDC)

www.cdc.gov, 800-311-3435 or 404-639-3534

CDC addresses FAS through the activities of its FAS program, which

focuses on prevention. CDC also hosts the National Task Force on

FAS/Fetal Alcohol Effect. In addition, diagnostic guidelines are now

available in PDF format on CDC’s Web site.

Indian Health Service (IHS)

www.ihs.gov, 301-443-3024

The IHS Behavioral Health Program strives to eliminate alcoholism and

other drug dependencies and improve the health care of American

Indians and Alaska Natives.

Interagency Coordinating Committee on Fetal Alcohol Syndrome

(ICCFAS)

www.niaaa.nih.gov/aboutniaaa/interagency, 301-443-1269

ICCFAS is hosted by the National Institute on Alcohol Abuse and

Alcoholism. It includes representatives from various branches of the

Department of Health and Human Services and the Departments of

Education and Justice. ICCFAS members work to exchange information

and coordinate Federal FAS strategies and programs.

American Indian/Alaska Native/Native Hawaiian Initiative

Fetal Alcohol Spectrum Disorders

Resource List (Continued)

5
Interagency Coordinating Committee on the Prevention of Underage

Drinking (ICCPUD)

www.stopalcoholabuse.gov, 240-276-2235

The site www.stopalcoholabuse.gov is a comprehensive portal of Federal

resources for information on underage drinking and ideas for combating

this issue.

National Clearinghouse for Alcohol and Drug Information (NCADI)

http://ncadi.samhsa.gov, 800-729-6686

NCADI is operated by the Substance Abuse and Mental Health Services

Administration. It has one of the largest repositories of alcohol and drug

information in the world and offers access to current literature, research

reports, and educational resources. NCADI’s online catalog includes an

FASD page.

National Institute on Alcohol Abuse and Alcoholism (NIAAA)

www.niaaa.nih.gov, 301-443-3860

NIAAA supports research to improve the diagnosis and assessment of

alcohol-related impairment and disability and to develop tools to

enhance academic and daily living skills. Areas of research include

screening, diagnosis, and treatment of FASD.

Office of Juvenile Justice and Delinquency Prevention (OJJDP)

www.ojjdp.ncjrs.org, 202-307-5911

OJJDP provides national leadership, coordination, and resources to

prevent and respond to juvenile delinquency and victimization. OJJDP

supports States and communities in their efforts to develop and

implement effective and coordinated prevention and intervention

programs and to improve the juvenile justice system so that it protects

public safety, holds offenders accountable, and provides treatment and

rehabilitative services tailored to the needs of juveniles and their families.

Substance Abuse and Mental Health Services Administration

(SAMHSA)

www.samhsa.gov, 240-276-2000

SAMHSA‘s mission focuses on building resilience and facilitating

recovery for people with or at risk for mental or substance use

disorders. The Web site offers resources for help, information on

current programs and campaigns, and a feature that allows browsing

by topic (including FASD).

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SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence

www.fasdcenter.samhsa.gov, 866-STOPFAS

The SAMHSA FASD Center for Excellence is a Federal initiative devoted

to preventing and treating FASD. The Web site provides information and

resources about FASD, including materials that be can be used to raise

awareness about these disorders.

National Organizations

March of Dimes

www.marchofdimes.com, 888-663-4637

March of Dimes researchers, volunteers, educators, outreach workers,

and advocates work together to address prematurity, birth defects, and

low birthweight.

Minnesota Organization on Fetal Alcohol Syndrome (MOFAS)

www.mofas.org, 866-90MOFAS

MOFAS is a nonprofit organization dedicated to eliminating alcoholrelated birth defects and improving the quality of life for individuals with

an FASD and their families. MOFAS is the first State affiliate of the

National Organization on Fetal Alcohol Syndrome.

National Organization on Fetal Alcohol Syndrome (NOFAS)

www.nofas.org, 800-66NOFAS

NOFAS is dedicated to eliminating alcohol-related birth defects and

improving the quality of life for individuals with an FASD and their

families.

Organization of Teratology Information Specialists (OTIS)

www.otispregnancy.org, 866-626-OTIS

OTIS is an organization of individual member programs that are

located throughout the United States and in Canada. Each Teratology

Information Service is a comprehensive resource for medical consultation

on prenatal exposure to drugs, medications, chemicals, and other

substances. These programs interpret information regarding

reproductive risks into risk assessments that are communicated to

individuals and health care providers.

American Indian/Alaska Native/Native Hawaiian Initiative

Fetal Alcohol Spectrum Disorders

Resource List (Continued)

7
The Arc of the United States

www.thearc.org, 301-565-3842

The Arc is the national organization of and for people with mental

retardation and related developmental disabilities and their families. The

Arc has a fetal alcohol syndrome page. It is devoted to promoting and

improving supports and services for these individuals, and it fosters

research and education regarding the prevention of mental retardation

in infants and young children. The Arc’s FAS page can be found at

www.thearc.org/fetalalcohol.html.

DHHS Publication No. (SMA) 07-4264 8

Printed 2007

Pregnancy is Sacred

For more information, visit fasdcenter.samhsa.gov or call 866-STOPFAS.

www.stopalcoholabuse.gov