[Federal Register Volume 69, Number 240 (Wednesday, December 15, 2004)]
[Notices]
[Page 75075]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 04-27388]


-----------------------------------------------------------------------

DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Advisory Committee on Heritable Disorders and Genetic Diseases in 
Newborns and Children; Notice of Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Public Law 92-463), notice is hereby given of the 
following meeting:

    Name: Advisory Committee on Heritable Disorders and Genetic 
Diseases in Newborns and Children (ACHDGDNC).
    Dates and Times: January 13, 2005, 9 a.m. to 5 p.m. January 14, 
2005, 9 a.m. to 5 p.m.
    Place: Ronald Reagan Building and International Trade Center, 
1300 Pennsylvania Avenue, NW., Washington, DC 20004.
    Status: The meeting will be open to the public with attendance 
limited to space availability.
    Purpose: The Advisory Committee provides advice and 
recommendations concerning the grants and projects authorized under 
the Heritable Disorders Program and technical information to develop 
policies and priorities for this program that will enhance the 
ability of State and local health agencies to provide for newborn 
and child screening, counseling and health care services for 
newborns and children having or at risk for heritable disorders. 
Specifically, the Committee shall advise and guide the Secretary 
regarding the most appropriate application of universal newborn 
screening tests, technologies, policies, guidelines and programs for 
effectively reducing morbidity and mortality in newborns and 
children having or at risk for heritable disorders.
    Agenda: The first day will be devoted to presentations on and a 
discussion of the status of the report from the American College of 
Medical Genetics; an update of the current status of state specific 
issues; presentations on the Rare Disease Centers of Excellence 
funded by the National Institutes of Health and the Regional 
Genetics; and Newborn Screening Collaboratives funded by the Health 
Resources and Services Administration. The presentations will be 
followed on the first and second day with more detailed discussions 
aimed at formulating the ACHDGDNC issues agenda.
    Proposed agenda items are subject to change.
    Time will be provided each day for public comment. Individuals 
who wish to provide public comment or who plan to attend the meeting 
and need special assistance, such as sign language interpretation or 
other reasonable accommodations, should notify the ACHDGDNC 
Executive Secretary, Michele A. Lloyd-Puryear, M.D., Ph.D. (contact 
information provided below).
    Contact Person: Anyone interested in obtaining a roster of 
members or other relevant information should write or contact 
Michele A. Lloyd-Puryear, M.D., Ph.D., Maternal and Child Health 
Bureau, Health Resources and Services Administration, Room 18A-19, 
Parklawn Building, 5600 Fishers Lane, Rockville, Maryland 20857, 
Telephone (301) 443-1080. Information on the Advisory Committee is 
available at http://mchb.hrsa.gov/programs/genetics/committee.

    Dated: December 8, 2004.
Tina M. Cheatham,
Director, Division of Policy Review and Coordination.
[FR Doc. 04-27388 Filed 12-14-04; 8:45 am]
BILLING CODE 4165-15-P