II 

116TH CONGRESS 

1ST SESSION S. 901 

To amend the Older Americans Act of 1965 to support individuals with 

younger onset Alzheimer’s disease. 

IN THE SENATE OF THE UNITED STATES 

MARCH 27, 2019 

Ms. COLLINS (for herself, Mr. CASEY, Mrs. CAPITO, and Mr. JONES) introduced the following bill; which was read twice and referred to the Committee on Health, Education, Labor, and Pensions 

A BILL 

To amend the Older Americans Act of 1965 to support 

individuals with younger onset Alzheimer’s disease. 

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled, 

3 SECTION 1. SHORT TITLE. 

4 This Act may be cited as the ‘‘Younger Onset Alz5 heimer’s Disease Act’’. 

6 SEC. 2. FINDINGS. 

7 Congress finds the following: 

8 (1) Approximately 5,800,000 individuals in the 

9 United States are living with Alzheimer’s disease. 


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1 This includes approximately 200,000 individuals 

2 with younger onset Alzheimer’s disease. 

3 (2) Alzheimer’s disease costs the United States 

4 more than $290,000,000 per year, including 

5 $195,000,000 in costs to Medicare and Medicaid. 

6 (3) The Older Americans Act of 1965 (42 

7 U.S.C. 3001 et seq.) includes services that focus on 

8 the needs of individuals with Alzheimer’s disease and 

9 related disorders. The need to specifically support 

10 individuals with younger onset Alzheimer’s disease is 

11 growing. 

12 SEC. 3. YOUNGER ONSET ALZHEIMER’S DISEASE. 

13 The Older Americans Act of 1965 is amended— 

14 (1) in section 302(3) (42 U.S.C. 3022(3)), by 

15 striking ‘‘an individual with Alzheimer’s disease’’ 

16 and inserting ‘‘an individual of any age with Alz17 heimer’s disease’’; and 

18 (2) in section 711(6) (42 U.S.C. 3058f(6)), by 

19 inserting ‘‘of any age’’ after ‘‘individual’’. 

20 SEC. 4. REPORT. 

21 (a) IN GENERAL.—Not later than 300 days after the 

22 date of enactment of this Act, and annually thereafter, 

23 the Assistant Secretary for Aging shall submit a report, 

24 to the committees of Congress described in subsection (b), 

25 that includes— 


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1 (1) an overview of programmatic functions and 

2 performance with respect to the amendments made 

3 by section 3, including information about individuals 

4 with younger onset Alzheimer’s disease; and 

5 (2) an identification of the gaps in needs of in6 dividuals with younger onset Alzheimer’s disease. 

7 (b) COMMITTEES.—The committees of Congress de8 scribed in this subsection are— 

9 (1) the Special Committee on Aging, the Com10 mittee on Health, Education, Labor, and Pensions, 

11 and the Committee on Finance, of the Senate; and 

12 (2) the Committee on Education and Labor, 

13 and the Committee on Energy and Commerce, of the 

14 House of Representatives. 

15 SEC. 5. DEFINITION OF YOUNGER ONSET ALZHEIMER’S DIS16 EASE. 

17 In this Act, the term ‘‘younger onset Alzheimer’s dis18 ease’’, with respect to an individual, means an individual 

19 with Alzheimer’s disease or a related disorder who has not 

20 attained 60 years of age. 

Æ 


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