II 

Calendar No. 283 

116TH CONGRESS 

1ST SESSION S. 995 

To amend title XXIX of the Public Health Service Act to reauthorize the 

program under such title relating to lifespan respite care. 

IN THE SENATE OF THE UNITED STATES 

APRIL 2, 2019 

Ms. COLLINS (for herself and Ms. BALDWIN) introduced the following bill; 

which was read twice and referred to the Committee on Health, Education, Labor, and Pensions 

NOVEMBER 5, 2019 

Reported by Mr. ALEXANDER, with an amendment 

[Strike out all after the enacting clause and insert the part printed in italic] 

A BILL 

To amend title XXIX of the Public Health Service Act 

to reauthorize the program under such title relating to 

lifespan respite care. 

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled, 

3 SECTION 1. SHORT TITLE. 

4 This Act may be cited as the ‘‘Lifespan Respite Care 

5 Reauthorization Act of 2019’’. 


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1 SEC. 2. FINDINGS. 

2 Congress finds the following: 

3 (1) There are an estimated 43,000,000 family 

4 caregivers nationwide that provide care for loved 

5 ones with chronic, disabling health conditions across 

6 the lifespan. 

7 (2) The economic value of uncompensated fam8 ily caregiving to the United States economy was esti9 mated at $470,000,000,000 in 2013, more than 

10 total Medicaid spending of $449,000,000,000, in11 cluding both Federal and State contributions for 

12 medical and long-term care in the same year. 

13 (3) While caring for the aging population re14 mains a growing concern, more than half of care re15 cipients are under age 75, and almost one-third are 

16 under age 50. 

17 (4) Respite provides temporary relief to care18 givers from the ongoing responsibility of caring for 

19 individuals of all ages with special needs. 

20 (5) Respite care is one of the most commonly 

21 requested caregiver support services. 

22 (6) Respite has been shown to provide family 

23 caregivers with the relief necessary to maintain their 

24 own health, balance work and family, bolster family 

25 stability, keep marriages intact, and avoid or delay 

26 more costly nursing home or foster care placements. 


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1 (7) Delaying nursing home, institutional, or fos2 ter care placement of just one individual for several 

3 months can save Medicaid, child welfare, or other 

4 government programs tens of thousands of dollars. 

5 (8) The Lifespan Respite Care Act of 2006 

6 (Public Law 109–442) was originally enacted to im7 prove the delivery and quality of respite care services 

8 available to families across all age and disability 

9 groups by establishing coordinated lifespan respite 

10 systems. 

11 (9) Thirty-seven States and the District of Co12 lumbia have received grants under the Lifespan Res13 pite Care Act of 2006 to improve the availability and 

14 quality of respite services across the lifespan. 

15 (10) For the Nation’s wounded servicemembers 

16 and veterans with traumatic brain injuries and other 

17 conditions, respite systems could be an integral life18 line for families in their new roles as lifelong family 

19 caregivers. 

20 (11) The Department of Veterans Affairs and 

21 Congress have both acknowledged the unique chal22 lenges facing caregivers of returning servicemembers 

23 and veterans, as well as the need for increased care24 giver services. 


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1 (12) The increased utilization of, and costs to, 

2 long-term care systems requires the continued devel3 opment of coordinated family support services like 

4 lifespan respite care. 

5 SEC. 3. REAUTHORIZATION OF LIFESPAN RESPITE CARE 

6 PROGRAM. 

7 (a) DATA COLLECTION AND REPORTING.—Section 

8 2904 of the Public Health Service Act (42 U.S.C. 290ii– 

9 3) is amended to read as follows: 

10 ‘‘SEC. 2904. DATA COLLECTION AND REPORTING. 

11 ‘‘Each eligible State agency awarded a grant or coop12 erative agreement under section 2902 shall collect, main13 tain, and report such data and records at such times, in 

14 such form, and in such manner as the Secretary may re15 quire to enable the Secretary— 

16 ‘‘(1) to monitor State administration of pro17 grams and activities funded pursuant to such grant 

18 or cooperative agreement; and 

19 ‘‘(2) to evaluate, and to compare effectiveness 

20 on a State-by-State basis, of programs and activities 

21 funded pursuant to section 2902.’’. 

22 (b) FUNDING.—Section 2905 of the Public Health 

23 Service Act (42 U.S.C. 300ii–4) is amended by striking 

24 paragraphs (1) through (5) and inserting the following: 

25 ‘‘(1) $20,000,000 for fiscal year 2020; 


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1 ‘‘(2) $30,000,000 for fiscal year 2021; 

2 ‘‘(3) $40,000,000 for fiscal year 2022; 

3 ‘‘(4) $50,000,000 for fiscal year 2023; and 

4 ‘‘(5) $60,000,000 for fiscal year 2024.’’. 

5 SECTION 1. SHORT TITLE. 

6 This Act may be cited as the ‘‘Lifespan Respite Care 

7 Reauthorization Act of 2019’’. 

8 SEC. 2. REAUTHORIZATION OF LIFESPAN RESPITE CARE 

9 PROGRAM. 

10 (a) DATA COLLECTION AND REPORTING.—Section 

11 2904 of the Public Health Service Act (42 U.S.C. 300ii– 

12 3) is amended to read as follows: 

13 ‘‘SEC. 2904. DATA COLLECTION AND REPORTING. 

14 ‘‘(a) IN GENERAL.—Each State agency awarded a 

15 grant or cooperative agreement under section 2902 shall re16 port such data, information, and metrics as the Secretary 

17 may require for purposes of— 

18 ‘‘(1) evaluating State programs and activities 

19 funded pursuant to such grant or cooperative agree20 ment, including any results pursuant to section 

21 2902(d)(2)(B)(xii); and 

22 ‘‘(2) identifying effective programs and activities 

23 funded pursuant to section 2902. 

24 ‘‘(b) REPORT.—Not later than October 1, 2023, the 

25 Secretary shall submit a report to the Committee on Health, 


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1 Education, Labor, and Pensions of the Senate and the Com2 mittee on Energy and Commerce of the House of Represent3 atives regarding the outcomes of the programs and activities 

4 funded pursuant to section 2902, including any effective 

5 programs and activities identified.’’. 

6 (b) FUNDING.—Section 2905 of the Public Health 

7 Service Act (42 U.S.C. 300ii–4) is amended by striking 

8 ‘‘title’’ and all that follows through the period and inserting 

9 ‘‘title, $10,000,000 for each of fiscal years 2020 through fis10 cal year 2024.’’. 


kjohnson on DSK79L0C42 with BILLS

kjohnson on DSK79L0C42 with BILLS
Calendar No. 283 

116TH CONGRESS 

1ST SESSION S. 995 

A BILL 

To amend title XXIX of the Public Health Service 

relating to lifespan respite care. Act to reauthorize the program under such title 

NOVEMBER 5, 2019 

Reported with an amendment 


kjohnson on DSK79L0C42 with BILLS