I need doctor to help me with my PKU adult child. Have been with Emory Univ. of Medicine for quite a number of years and they are totally no help with my child developing memory problems. They (the Human Genetics dept) suggested a neurologist, went, had MRI, EEG, full Blood workup, they say OK, but Emory saidpossible dementia problems, having trouble conversing with day to day ativity, and not being able to answer simple questions, SO where can I get help without having to be involved with Emory?

Summarized question: How can dementia be treated while suffering from phenylketonuria?