I have PCT; sporadic, tested at mayo clinic, being treated in Minot ND have had 10 phlebs, ferritin was at 153 before the 10th phleb, I am seeing a blood specialist, I ask him questions about arthritis and skip problems and he will not answer any questions and gets offended like I am a idiot, his answer too arthritis was that pct does not help cause arthritis,I asked him how long he has known about pct and hjs answer is that he has been a doctor for 25 years, that was his answer, who do I see in North Dakota that can answer my questions, my PA did not even know what it was, I went to a arthritis specialist with all the blisters on my swollen hands in Minot ND and he knows nothing about pct, i asked the blood specialist if he did a liver function test before the 10th phleb and he says maybe we will on the next phleb,am I being treated and tested properly, I just want some forsight into how bad my liver is or what damage they think I may have to my body, I started having symtoms 3 years ago and advocated for myself until they finally sent me to a dermatologist and he figures out what I have immediatly, any suggestions?

Summarized question: What is the prognosis in sporadic porphyria cutanea tarda and how to manage it?