Yes. Thank you. I have a 12 year old daughter with Vacterl Association. Many health issues...Post-op tetralogy of fallot, tethered cord, imperforate anus, ostomy, spina bifida, residual vsd, (repaired with experimental patch), and recently, large stent placed in left pulmonary artery as it was almost completey blocked due to birth defects that we have missed. Despite all of this, functional, happy, tall....however learning disabilities...terribly artistic....also missing some pieces of her immune system. Is a child like this able to live an almost normal life span? It seems some of our doctors have become immune to her problems as she is still here. I worry she will be overlooked.

Summarized question: Can my daughter with spina bifida and ostomy live normal life?