SUBJECT: Periventricular Heterotopia
MESSAGE: I have a 10 years old boy that was diagnose with Periventricular Heterotopia and long time ago I read something that say that the most someone last with that syndrome is 309years.Is that true. And do you know about someone interested in wanting to do research about it? I will like to lern more about it. But theres not much information.

Summarized question: Where can I find information on Periventricular Heterotopia, including prognosis?