A 65 year old female friend of mine was just recently diagnosed with Frontotemporal dementia - temporal variant.  She is devastated.  I am trying to help her find resources, clinical trials, etc. to help her.  Can you give me some names of doctors to contact, pertinent institutions to contact regarding the treatment of this disease.  Thank you.  

Summarized question: Are there any clinical trials and other resources for a 65 year old female with Frontotemporal dementia?