I am a 65 yr old woman who has just recently found out that I have had Hirschsprung's Disease all of my life. I have been going to one doctor after another for 45 years trying to find out what is wrong with me. I FINALLY found one who knew. Can you give me more information about HD in adults?  Mine is not adult-onset, I've had it for 65 years but did not know what it was.

Summarized question: where can i find information for adults with Hirschsprung's disease?