Please, please let us know where to get information and treatment for COLLAGENOUS GASTRITIS.  Our 15 year old daughter has been suffering from severe abdominal pain, vomiting- almost daily/sometimes multiple times daily, lethargy,  and not able to live life for just 9.5 weeks now.  She was diagnosed with biopsy results from her endoscopy this week.  This is such a rare disease- we are not sure what to do.  Her peds GI has heard of this, but not  able to answer all our questions, as there seem to be no answers- no cure & no know cause.

Summarized question: Where can we get information and treatment for collagenous gastritis?