i've had the best obstetric care um doctors are humans right and uh humans are human and doctors are amazing and every doctor is going to do their best but you know some naturally are better fits than others and as a patient it's my right it's your right to seek a care provider that works for us well um i feel like i need a new ob gyn just because i haven't really gotten the care that i've needed even before finding this hww syndrome but as i see this i'm like wow i really want to go in for another round of imaging i want to speak to someone who knows about this speak to someone who's worked in fetal development or in genetics or you know in gynecology who can understand this and what it means for me it's almost relieving in a way to know that it's not just in my head not being hypochondriacs here you know but is this stuff related is me being born with one kidney and potentially having connective tissue disorder stuff could that relate to how my body either absorbs or processes or creates this vitamin d this calcitriol and could that be related to other genetic things in my body like psoriasis or thyroid and therefore could that all be impacting my hair loss or my dry skin or these things that are very evident to me that i care about and again we are not self-diagnosing here this is why even outside of talking to people that i know or that i consider myself friends with i'm speaking to specialists and doctors as a patient not saying that you should compare your blood work to mine or that you should get on the same prescriptions that i do please don't do that i'm just saying as your acne big sister who's been going through stuff i want to talk to you as my skincare sibling and share what's been going on it's almost like a path of further self-discovery and again not being a hypochondriac not having anxiety about medical conditions or things like that it's just that i'm trying to uncover these things and i finally feel like i have a team of care providers who's really in my court to help do that it's refreshing you know is this stuff all related and even when i was a child i remember you know i would sit in um cooking class and i would sit here and my scalp would bleed and people would tease me and at the time i thought it was acne because i had acne all over my face but looking back you know they kind of looked like psoriasis or was it atopic dermatitis is it what my other family member is dealing with and it would just bleed and i would itch at it because it was itchy and what i'm currently going through with just kind of little dry patches or dry patches on my skin is this the same and related to what i had as a child or is this something different um i don't actually know but with all of this it's just it's interesting and it's kind of cool to finally feel like i'm getting some answers and you know hopefully in sharing this with others listen i know that it opens me up for criticism by speaking online i recognize that people can
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