Study: NCT05419245

Intervention type: OTHER
Intervention: Medical Records Review
Description: Review of medical records will be used, along with Guided Health History for Freeman-Burian Syndrome Questionnaire to assess patient histories and outcomes.

Intervention type: OTHER
Intervention: Medical Records Review
Description: Review of medical records will be used, along with Guided Health History for Freeman-Burian Syndrome Questionnaire to assess patient histories and outcomes.

Intervention type: OTHER
Intervention: Medical Records Review
Description: Review of medical records will be used, along with Guided Health History for Freeman-Burian Syndrome Questionnaire to assess patient histories and outcomes.

Intervention type: OTHER
Intervention: Medical Records Review
Description: Review of medical records will be used, along with Guided Health History for Freeman-Burian Syndrome Questionnaire to assess patient histories and outcomes.

Intervention type: OTHER
Intervention: Medical Records Review
Description: Review of medical records will be used, along with Guided Health History for Freeman-Burian Syndrome Questionnaire to assess patient histories and outcomes.

Intervention type: OTHER
Intervention: Medical Records Review
Description: Review of medical records will be used, along with Guided Health History for Freeman-Burian Syndrome Questionnaire to assess patient histories and outcomes.

Intervention type: OTHER
Intervention: PTSD Checklist for DSM-5
Description: Completed by patients before the interview. The PTSD Checklist for DSM-5 is a 20-item questionnaire. Each item is rated 0-4, with 0 being Not at all and 4 being Extremely. Lower scores suggest the person may be experiencing fewer symptoms.

Intervention type: OTHER
Intervention: PTSD Checklist for DSM-5
Description: Completed by patients before the interview. The PTSD Checklist for DSM-5 is a 20-item questionnaire. Each item is rated 0-4, with 0 being Not at all and 4 being Extremely. Lower scores suggest the person may be experiencing fewer symptoms.

Intervention type: OTHER
Intervention: PTSD Checklist for DSM-5
Description: Completed by patients before the interview. The PTSD Checklist for DSM-5 is a 20-item questionnaire. Each item is rated 0-4, with 0 being Not at all and 4 being Extremely. Lower scores suggest the person may be experiencing fewer symptoms.

Intervention type: OTHER
Intervention: PTSD Checklist for DSM-5
Description: Completed by patients before the interview. The PTSD Checklist for DSM-5 is a 20-item questionnaire. Each item is rated 0-4, with 0 being Not at all and 4 being Extremely. Lower scores suggest the person may be experiencing fewer symptoms.

Intervention type: OTHER
Intervention: PTSD Checklist for DSM-5
Description: Completed by patients before the interview. The PTSD Checklist for DSM-5 is a 20-item questionnaire. Each item is rated 0-4, with 0 being Not at all and 4 being Extremely. Lower scores suggest the person may be experiencing fewer symptoms.

Intervention type: OTHER
Intervention: PTSD Checklist for DSM-5
Description: Completed by patients before the interview. The PTSD Checklist for DSM-5 is a 20-item questionnaire. Each item is rated 0-4, with 0 being Not at all and 4 being Extremely. Lower scores suggest the person may be experiencing fewer symptoms.

Intervention type: OTHER
Intervention: Modified Flanagan Quality of Life Scale
Description: Completed by patients before the interview. The Modified Flanagan Quality of Life Scale is a 16-item survey designed for use in persons with chronic illness. Each item is rated 1-7, with 1 being Terrible and 7 being Delighted. Higher scores suggest the person may be experiencing a better quality of life.

Intervention type: OTHER
Intervention: Modified Flanagan Quality of Life Scale
Description: Completed by patients before the interview. The Modified Flanagan Quality of Life Scale is a 16-item survey designed for use in persons with chronic illness. Each item is rated 1-7, with 1 being Terrible and 7 being Delighted. Higher scores suggest the person may be experiencing a better quality of life.

Intervention type: OTHER
Intervention: Modified Flanagan Quality of Life Scale
Description: Completed by patients before the interview. The Modified Flanagan Quality of Life Scale is a 16-item survey designed for use in persons with chronic illness. Each item is rated 1-7, with 1 being Terrible and 7 being Delighted. Higher scores suggest the person may be experiencing a better quality of life.

Intervention type: OTHER
Intervention: Modified Flanagan Quality of Life Scale
Description: Completed by patients before the interview. The Modified Flanagan Quality of Life Scale is a 16-item survey designed for use in persons with chronic illness. Each item is rated 1-7, with 1 being Terrible and 7 being Delighted. Higher scores suggest the person may be experiencing a better quality of life.

Intervention type: OTHER
Intervention: Modified Flanagan Quality of Life Scale
Description: Completed by patients before the interview. The Modified Flanagan Quality of Life Scale is a 16-item survey designed for use in persons with chronic illness. Each item is rated 1-7, with 1 being Terrible and 7 being Delighted. Higher scores suggest the person may be experiencing a better quality of life.

Intervention type: OTHER
Intervention: Modified Flanagan Quality of Life Scale
Description: Completed by patients before the interview. The Modified Flanagan Quality of Life Scale is a 16-item survey designed for use in persons with chronic illness. Each item is rated 1-7, with 1 being Terrible and 7 being Delighted. Higher scores suggest the person may be experiencing a better quality of life.

Intervention type: OTHER
Intervention: Center for Epidemiologic Studies Depression Scale
Description: Completed by patients before the interview. The Center for Epidemiologic Studies Depression Scale is a 20-item survey that asks about depressive feelings and behaviours in the past week. Each item is rated 0-3, with 0 being Rarely or none of the time (less than 1 day) and 3 being Most or all of the time (5-7 days). Lower scores suggest the person may be experiencing fewer symptoms.

Intervention type: OTHER
Intervention: Center for Epidemiologic Studies Depression Scale
Description: Completed by patients before the interview. The Center for Epidemiologic Studies Depression Scale is a 20-item survey that asks about depressive feelings and behaviours in the past week. Each item is rated 0-3, with 0 being Rarely or none of the time (less than 1 day) and 3 being Most or all of the time (5-7 days). Lower scores suggest the person may be experiencing fewer symptoms.

Intervention type: OTHER
Intervention: Center for Epidemiologic Studies Depression Scale
Description: Completed by patients before the interview. The Center for Epidemiologic Studies Depression Scale is a 20-item survey that asks about depressive feelings and behaviours in the past week. Each item is rated 0-3, with 0 being Rarely or none of the time (less than 1 day) and 3 being Most or all of the time (5-7 days). Lower scores suggest the person may be experiencing fewer symptoms.

Intervention type: OTHER
Intervention: Center for Epidemiologic Studies Depression Scale
Description: Completed by patients before the interview. The Center for Epidemiologic Studies Depression Scale is a 20-item survey that asks about depressive feelings and behaviours in the past week. Each item is rated 0-3, with 0 being Rarely or none of the time (less than 1 day) and 3 being Most or all of the time (5-7 days). Lower scores suggest the person may be experiencing fewer symptoms.

Intervention type: OTHER
Intervention: Center for Epidemiologic Studies Depression Scale
Description: Completed by patients before the interview. The Center for Epidemiologic Studies Depression Scale is a 20-item survey that asks about depressive feelings and behaviours in the past week. Each item is rated 0-3, with 0 being Rarely or none of the time (less than 1 day) and 3 being Most or all of the time (5-7 days). Lower scores suggest the person may be experiencing fewer symptoms.

Intervention type: OTHER
Intervention: Center for Epidemiologic Studies Depression Scale
Description: Completed by patients before the interview. The Center for Epidemiologic Studies Depression Scale is a 20-item survey that asks about depressive feelings and behaviours in the past week. Each item is rated 0-3, with 0 being Rarely or none of the time (less than 1 day) and 3 being Most or all of the time (5-7 days). Lower scores suggest the person may be experiencing fewer symptoms.

Intervention type: OTHER
Intervention: Review of Systems
Description: Completed during the interview. A review of systems is a checklist of medical problems.

Intervention type: OTHER
Intervention: Review of Systems
Description: Completed during the interview. A review of systems is a checklist of medical problems.

Intervention type: OTHER
Intervention: Review of Systems
Description: Completed during the interview. A review of systems is a checklist of medical problems.

Intervention type: OTHER
Intervention: Review of Systems
Description: Completed during the interview. A review of systems is a checklist of medical problems.

Intervention type: OTHER
Intervention: Review of Systems
Description: Completed during the interview. A review of systems is a checklist of medical problems.

Intervention type: OTHER
Intervention: Review of Systems
Description: Completed during the interview. A review of systems is a checklist of medical problems.

Intervention type: OTHER
Intervention: FACE-Q | Craniofacial - Appearance of the Face
Description: Completed by patients. The FACE-Q \| Craniofacial - Appearance of the Face is a 9-item questionnaire. Each item is rated 1-4, with 1 being Not at All and 4 being Very Much. Lower scores suggest the person may be less pleased with the appearance of their face.