Study: NCT06616363

Intervention type: BEHAVIORAL
Intervention: Questionnaires to be competed
Description: * The Pain Coping Questionnaire short form~* Functional Disability Inventory (FDI), the primary clinical outcome measure.~* COMPASS-31 and orthostatic hypotension modified for POTS.~* The Pain Response Inventory (PRI)PROMIS Depression~* GAD-7 for anxiety~* Varni/Thompson Pediatric Pain Questionnaire~* Child and Parent Reports of Post-Traumatic Symptoms (CROPS/PROPS)~* Pain Catastrophizing Scale (PCS-C)~* Detailed account of natural history and evolution of POTS and COPCs through MEDYSA (facilitates the assessment of specific syndromic diagnoses based on published criteria, rather than organ-based classification of symptoms)

Intervention type: BEHAVIORAL
Intervention: Questionnaires to be competed
Description: * The Pain Coping Questionnaire short form~* Functional Disability Inventory (FDI), the primary clinical outcome measure.~* COMPASS-31 and orthostatic hypotension modified for POTS.~* The Pain Response Inventory (PRI)PROMIS Depression~* GAD-7 for anxiety~* Varni/Thompson Pediatric Pain Questionnaire~* Child and Parent Reports of Post-Traumatic Symptoms (CROPS/PROPS)~* Pain Catastrophizing Scale (PCS-C)~* Detailed account of natural history and evolution of POTS and COPCs through MEDYSA (facilitates the assessment of specific syndromic diagnoses based on published criteria, rather than organ-based classification of symptoms)

Intervention type: BEHAVIORAL
Intervention: Questionnaires to be competed
Description: * The Pain Coping Questionnaire short form~* Functional Disability Inventory (FDI), the primary clinical outcome measure.~* COMPASS-31 and orthostatic hypotension modified for POTS.~* The Pain Response Inventory (PRI)PROMIS Depression~* GAD-7 for anxiety~* Varni/Thompson Pediatric Pain Questionnaire~* Child and Parent Reports of Post-Traumatic Symptoms (CROPS/PROPS)~* Pain Catastrophizing Scale (PCS-C)~* Detailed account of natural history and evolution of POTS and COPCs through MEDYSA (facilitates the assessment of specific syndromic diagnoses based on published criteria, rather than organ-based classification of symptoms)

Intervention type: BEHAVIORAL
Intervention: Provide list of medication and lifetime events
Description: Participants will provide a list of all medications taken at each visit time, lifetime history of infections, traumas, and other significant life events.

Intervention type: BEHAVIORAL
Intervention: Provide list of medication and lifetime events
Description: Participants will provide a list of all medications taken at each visit time, lifetime history of infections, traumas, and other significant life events.

Intervention type: BEHAVIORAL
Intervention: Provide list of medication and lifetime events
Description: Participants will provide a list of all medications taken at each visit time, lifetime history of infections, traumas, and other significant life events.

Intervention type: BEHAVIORAL
Intervention: Use phone App to record new life events
Description: Subjects will also record new life events, minor traumas, entrance into a flare and menses in Ilumivu's EMA (Ecological Momentary Assessment) phone App

Intervention type: BEHAVIORAL
Intervention: Use phone App to record new life events
Description: Subjects will also record new life events, minor traumas, entrance into a flare and menses in Ilumivu's EMA (Ecological Momentary Assessment) phone App

Intervention type: BEHAVIORAL
Intervention: Use phone App to record new life events
Description: Subjects will also record new life events, minor traumas, entrance into a flare and menses in Ilumivu's EMA (Ecological Momentary Assessment) phone App

Intervention type: DEVICE
Intervention: Will wear an activity monitor
Description: Participants will have an activity monitor loaned for the duration of the study to track their physical activity.

Intervention type: DEVICE
Intervention: Will wear an activity monitor
Description: Participants will have an activity monitor loaned for the duration of the study to track their physical activity.

Intervention type: DEVICE
Intervention: Will wear an activity monitor
Description: Participants will have an activity monitor loaned for the duration of the study to track their physical activity.

Intervention type: OTHER
Intervention: Periodic 24-hour urine sodium check
Description: POTS patients will have a periodic 24-hour urine sodium check to determine compliance to intake of salt.