Study: NCT05999448

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Durand Sleep Intervention
Description: Durand Sleep Intervention will be deployed weekly for 12 weeks, alternating between individual and group formats, via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed psychologist or behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: RUBI Intervention
Description: RUBI will be deployed weekly for 12 weeks in small groups via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: RUBI Intervention
Description: RUBI will be deployed weekly for 12 weeks in small groups via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: RUBI Intervention
Description: RUBI will be deployed weekly for 12 weeks in small groups via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: RUBI Intervention
Description: RUBI will be deployed weekly for 12 weeks in small groups via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: RUBI Intervention
Description: RUBI will be deployed weekly for 12 weeks in small groups via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: RUBI Intervention
Description: RUBI will be deployed weekly for 12 weeks in small groups via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: RUBI Intervention
Description: RUBI will be deployed weekly for 12 weeks in small groups via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: RUBI Intervention
Description: RUBI will be deployed weekly for 12 weeks in small groups via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Naturalistic Communication Intervention (NCI)
Description: NCI will be deployed weekly for 12 weeks on an individual basis via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Naturalistic Communication Intervention (NCI)
Description: NCI will be deployed weekly for 12 weeks on an individual basis via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Naturalistic Communication Intervention (NCI)
Description: NCI will be deployed weekly for 12 weeks on an individual basis via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Naturalistic Communication Intervention (NCI)
Description: NCI will be deployed weekly for 12 weeks on an individual basis via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Naturalistic Communication Intervention (NCI)
Description: NCI will be deployed weekly for 12 weeks on an individual basis via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Naturalistic Communication Intervention (NCI)
Description: NCI will be deployed weekly for 12 weeks on an individual basis via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Naturalistic Communication Intervention (NCI)
Description: NCI will be deployed weekly for 12 weeks on an individual basis via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Naturalistic Communication Intervention (NCI)
Description: NCI will be deployed weekly for 12 weeks on an individual basis via secure Zoom. Treatments will be deployed by supervised graduate student clinicians under the supervision of a licensed behavioral analyst.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Self-Guided Resources
Description: Participants will be provided a self-guided resource notebook that includes 12 weeks of content that parallels the topics examined in other support programs (child behavior management, child sleep, child communication, caregiver mental health, caregiver health behaviors, community connection)

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Self-Guided Resources
Description: Participants will be provided a self-guided resource notebook that includes 12 weeks of content that parallels the topics examined in other support programs (child behavior management, child sleep, child communication, caregiver mental health, caregiver health behaviors, community connection)

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Self-Guided Resources
Description: Participants will be provided a self-guided resource notebook that includes 12 weeks of content that parallels the topics examined in other support programs (child behavior management, child sleep, child communication, caregiver mental health, caregiver health behaviors, community connection)

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Self-Guided Resources
Description: Participants will be provided a self-guided resource notebook that includes 12 weeks of content that parallels the topics examined in other support programs (child behavior management, child sleep, child communication, caregiver mental health, caregiver health behaviors, community connection)

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Self-Guided Resources
Description: Participants will be provided a self-guided resource notebook that includes 12 weeks of content that parallels the topics examined in other support programs (child behavior management, child sleep, child communication, caregiver mental health, caregiver health behaviors, community connection)

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Self-Guided Resources
Description: Participants will be provided a self-guided resource notebook that includes 12 weeks of content that parallels the topics examined in other support programs (child behavior management, child sleep, child communication, caregiver mental health, caregiver health behaviors, community connection)

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Self-Guided Resources
Description: Participants will be provided a self-guided resource notebook that includes 12 weeks of content that parallels the topics examined in other support programs (child behavior management, child sleep, child communication, caregiver mental health, caregiver health behaviors, community connection)

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Self-Guided Resources
Description: Participants will be provided a self-guided resource notebook that includes 12 weeks of content that parallels the topics examined in other support programs (child behavior management, child sleep, child communication, caregiver mental health, caregiver health behaviors, community connection)

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Participation Enhancement Intervention (PEI)
Description: A standardized PEI intervention will be conducted by trained peer coaches who are also rare disorder caregivers. Each peer coach will work with their clients to complete a Change Plan Worksheet and will complete two booster sessions at midpoint and end of treatment. Coaches will also meet with their clients after follow-up data are complete to support connection back to community resources and patient-specific rare disorder communities.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Participation Enhancement Intervention (PEI)
Description: A standardized PEI intervention will be conducted by trained peer coaches who are also rare disorder caregivers. Each peer coach will work with their clients to complete a Change Plan Worksheet and will complete two booster sessions at midpoint and end of treatment. Coaches will also meet with their clients after follow-up data are complete to support connection back to community resources and patient-specific rare disorder communities.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Participation Enhancement Intervention (PEI)
Description: A standardized PEI intervention will be conducted by trained peer coaches who are also rare disorder caregivers. Each peer coach will work with their clients to complete a Change Plan Worksheet and will complete two booster sessions at midpoint and end of treatment. Coaches will also meet with their clients after follow-up data are complete to support connection back to community resources and patient-specific rare disorder communities.

Intervention type: BEHAVIORAL
Group type: EXPERIMENTAL
Intervention: Participation Enhancement Intervention (PEI)
Description: A standardized PEI intervention will be conducted by trained peer coaches who are also rare disorder caregivers. Each peer coach will work with their clients to complete a Change Plan Worksheet and will complete two booster sessions at midpoint and end of treatment. Coaches will also meet with their clients after follow-up data are complete to support connection back to community resources and patient-specific rare disorder communities.