Study: NCT01144741

Intervention type: OTHER
Intervention: Study of Therapeutic Outcomes and Practices in Freeman-Sheldon Syndrome (STOP-FSS) Questionnaire
Description: The STOP Questionnaire is a guided interview form that will be used to assess diagnosis, problems, treatments, and outcomes.

Intervention type: OTHER
Intervention: Study of Therapeutic Outcomes and Practices in Freeman-Sheldon Syndrome (STOP-FSS) Questionnaire
Description: The STOP Questionnaire is a guided interview form that will be used to assess diagnosis, problems, treatments, and outcomes.

Intervention type: OTHER
Intervention: FSRG Semi-Structured Quality of Life Interview (FSRG SSQLI)
Description: Completed after data analysis from the existing surveys, it will be a specific quality of life interview, taking into consideration individual's total health outcome.

Intervention type: OTHER
Intervention: FSRG Semi-Structured Quality of Life Interview (FSRG SSQLI)
Description: Completed after data analysis from the existing surveys, it will be a specific quality of life interview, taking into consideration individual's total health outcome.

Intervention type: OTHER
Intervention: FSRG Semi-Structured Quality of Life Interview (FSRG SSQLI)
Description: Completed after data analysis from the existing surveys, it will be a specific quality of life interview, taking into consideration individual's total health outcome.

Intervention type: OTHER
Intervention: FSRG Semi-Structured Quality of Life Interview (FSRG SSQLI)
Description: Completed after data analysis from the existing surveys, it will be a specific quality of life interview, taking into consideration individual's total health outcome.

Intervention type: OTHER
Intervention: FSRG Semi-Structured Quality of Life Interview (FSRG SSQLI)
Description: Completed after data analysis from the existing surveys, it will be a specific quality of life interview, taking into consideration individual's total health outcome.

Intervention type: OTHER
Intervention: FSRG Semi-Structured Quality of Life Interview (FSRG SSQLI)
Description: Completed after data analysis from the existing surveys, it will be a specific quality of life interview, taking into consideration individual's total health outcome.

Intervention type: OTHER
Intervention: Medical Records Review
Description: Review of medical records will be used, along with STOP-FSS Survey to assess patient histories and outcomes.

Intervention type: OTHER
Intervention: Medical Records Review
Description: Review of medical records will be used, along with STOP-FSS Survey to assess patient histories and outcomes.

Intervention type: OTHER
Intervention: Medical Records Review
Description: Review of medical records will be used, along with STOP-FSS Survey to assess patient histories and outcomes.

Intervention type: OTHER
Intervention: Medical Records Review
Description: Review of medical records will be used, along with STOP-FSS Survey to assess patient histories and outcomes.

Intervention type: OTHER
Intervention: Medical Records Review
Description: Review of medical records will be used, along with STOP-FSS Survey to assess patient histories and outcomes.

Intervention type: OTHER
Intervention: Medical Records Review
Description: Review of medical records will be used, along with STOP-FSS Survey to assess patient histories and outcomes.