Please select the eligibility criteria that correspond to the clinical trial below.
Title: Information and Financial Interventions for Kidney Donation in African Americans
Brief Summary: African Americans are less likely than Whites to receive kidney transplants, despite their being more than two-fold as likely as Whites to develop end stage renal disease (ESRD). Living related kidney donation (LD) offers patients an opportunity to bypass many barriers to receipt of deceased kidney transplants (e.g. waiting lists and immunological incompatibility), but minorities are less likely to receive living related kidney transplants (LRT). Evidence suggests African Americans may not discuss LD/LRT with their families or physicians at optimal rates, and thus may not have adequate information to initiate or participate in shared decision-making regarding LD/LRT. African Americans may also have financial concerns regarding convalescence and out of pocket expenses related to LD/LRT, another barrier impeding LD/LRT.

The primary goals of this study are to overcome these important barriers by enhancing ethnic minorities' consideration of LD/LRT through the promotion of shared decision-making regarding LD/LRT and provision of financial assistance for out of pocket expenses. The investigators specific aims are: a) to develop culturally sensitive informational (audiovisual) and financial interventions and b) to perform a randomized controlled trial to assess their effectiveness in increasing pursuit of LD/LRT among African American patients with ESRD and their families. The investigators hypothesize: (1) Patients and families who view informational materials designed to promote shared decision-making regarding LD/LRT will be more likely than patients and families not viewing these materials to discuss LD/LRT with family and with health care professionals. Patients and families viewing such informational materials will also be more likely than those not viewing these materials to pursue and complete the LD/LRT process and (2) patients and their families who are offered the intervention to promote shared decision-making plus a financial assistance intervention for potential live kidney donors will be more likely than patients and families not offered both interventions to pursue and complete the LD/LRT process.


Options:
A: For potential kidney transplant recipients (all arms):

Inclusion Criteria:

* Adult (18 yrs or older)
* African American
* Duke Kidney and Pancreas Transplant patients with end stage kidney disease
* Currently on the deceased donor kidney waiting list from the Duke Kidney and Pancreas Transplant Program
* Give consent to participate

Exclusion Criteria:

* Previous kidney transplant (Revised Sept 2016: persons who have previously received a deceased donor kidney transplant, but who have not previously received a live donor kidney transplant)
* Cognitively impaired/Change in cognition
* Impaired hearing or speech
* Non-English speaking

For family members or friends of potential kidney transplant recipients (TALK and TALK PLUS arms):

Inclusion Criteria:

* 18 or older
* Come to SWI meeting with patient
* Give consent to participate

For potential live kidney donors (TALKS PLUS arm only)

Inclusion Criteria:

* 18 or older
* Contact the study
* Give consent to participate
B: Inclusion Criteria:

* At least 2 visits with their primary care provider in the last 3 years
* Not previously consented to organ donation
* At least 15.5 years of age
* Less than 78 years of age

Exclusion Criteria:

* Visually impaired
* Cognitively impaired
* Non-English speaking
C: Inclusion Criteria:

* Age 18 or older
* End-stage renal disease (ESRD) receiving hemodialysis for less than 2 years
* Self-reported as African-American
* English Speaking

Exclusion Criteria:

* Dementia
* Prior Kidney Transplant
* Non-English Speaking
* Cancer within 2 years prior to recruitment date
* Stage 4 Congestive Heart Failure
* End Stage Liver Disease
* Unstable Coronary Artery Disease
* Pulmonary Hypertension
* Severe Peripheral Vascular Disease
* Chronic Debilitating Infections
D: Inclusion Criteria:

* Self-identify as Black, White, or Hispanic
* Must not have been deemed kidney transplant ineligible by UCLA Kidney and Pancreas Transplant Program
* Cannot be listed at another transplant center
* Can read English

Exclusion Criteria:

* Does not self-identify as Black, White, or Hispanic
* Deemed ineligible to receive a kidney transplant by UCLA Kidney and Transplant Program
* Listed at another transplant center
* Cannot read English

Answer: C