Title: Tay-Sachs Disease Awareness Day

Summary: Recognizes August 10, 2024, as "Tay-Sachs Disease Awareness Day" in Florida.

Full Text:
WHEREAS, infants with Tay-Sachs disease often fail to achieve milestones such as rolling over and sitting up, and develop muscle weakness, which gradually leads to paralysis, and WHEREAS, these infants also lose mental functions and become increasingly unresponsive to their surroundings, in some cases developing blindness, seizures, and difficulty swallowing by months of age, and WHEREAS, children with Tay-Sachs disease often die by 16 years of age, and WHEREAS, the carrier rate of Tay-Sachs disease for the general population is in people, and a child has a 19 percent chance of having the disease when both paren ts are carriers, and WHEREAS, there is currently no treatment or cure for Tay Sachs disease, rather only ways to manage symptoms, and WHEREAS, increasing awareness and education of Tay-Sachs disease may lead to significant progress in the research to HR 8023 2024 hr8023 FL OR I DA HO US EO FR EP RE SE NT A TI VE Sdetermine the cause of the gene mutation that results in the disease, and eventually a cure, NOW, THEREFORE, Be It Resolved by the House of Representatives of the State of Florida: That August 10, 2024, is recognized as "Tay-Sachs Disease Awareness Day " in Florida.