Title: Rare Disease Month

Summary: Designates April 2014 as "Rare Disease Month" in State of Florida.

Full Text:
WHEREAS, there are approximately 6,800 rare diseases recognized by the National Institutes of Health, one-half of which affect children, and WHEREAS, because of their rarity, it is difficult to identify, understand, and treat rare diseases, creating numerous challenges for patients and families affected by the diseases, and WHEREAS, in the decade prior to the passage of the Orphan Drug Act of 1983, only pharmaceutica ltreatments were developed to treat rare diseases, and WHEREAS, today, more than pharmaceutical treatments for rare diseases are in development, and the United States Food and Drug Administration and the National Institutes of Health have offices sol ely focused on the treatment of the diseases, and WHEREAS, a number of Floridians live with a rare disease, and the citizens of this state stand to support them and their families, NOW, THEREFORE, HR 9085 2014 hr9085 FL OR I DA HO US EO FR EP RE SE NT A TI VE SBe It Resolved by the House of Representatives of the State of Florida: That April 2014 is designated as "Rare Disease Month" in the State of Florida.