Title: Tay-Sachs Disease Awareness Day

Summary: Recognizes August 10, 2019, as "Tay-Sachs Disease Awareness Day."

Full Text:
WHEREAS, infants with Tay-Sachs disease often fail to achieve milestones such as rolling over and sitting up, and develop muscle weakne ss, which gradually leads to paralysis, and WHEREAS, infants also lose mental functions and become increasingly unresponsive to their surroundings, in some cases developing blindness, seizures, and difficulty swallowing by 14 months of age, and WHEREAS, children with Tay-Sachs disease often die by 16 years of age, and WHEREAS, the carrier rate of Tay-Sachs disease for the general population is 1/250, and a child has a percent chance of having the disease when both parents are carriers, and WHEREAS, th ere is currently no treatment or cure for Tay Sachs disease, rather only ways to manage symptoms, and WHEREAS, increasing awareness and education of Tay-Sachs disease may lead to significant progress in the research to HR 8015 2019 hr8015 FL OR I DA HO US EO FR EP RE SE NT A TI VE Sdetermine the cause of the gene muta tion that results in the disease, and eventually a cure, NOW, THEREFORE, Be It Resolved by the House of Representatives of the State of Florida: That August 10, 2019, is recognized as "Tay-Sachs Disease Awareness Day" in Florida.