The Extreme Measures We're Taking To Try To Save Our Daughter's Life
Category: PARENTS
My husband and I can't help but wonder if we're doing the right thing. Given the normal course and degenerative nature of Sanfilippo Syndrome, now is Eliza's best time to actually be able to do things out in the world. With our decision to not go out, we are taking those experiences away.
By Cara O'Neill, ContributorCo-founder, Cure Sanfilippo Foundation, 2014-10-30