How to Get Researchers to Notice an Ultra-Rare Disease
Category: HEALTHY LIVING
It doesn't help that Erdheim-Chester is notoriously difficult to diagnose and therefore, say researchers, most likely under- or mis-diagnosed. Only when there's a mass or lesion to study will pathologists look for identifying markers on cells -- if they even suspect ECD.
By Idelle Davidson, ContributorCo-author, 'Your Brain After Chemo: A Practical Guide to Lifti..., 2014-12-30