Question: How many people are affected by Schinzel-Giedion syndrome ?
Answer: Schinzel-Giedion syndrome is very rare, although the exact prevalence is unknown.
Source: GHR

Question: Is Schinzel-Giedion syndrome inherited ?
Answer: Schinzel-Giedion syndrome results from new mutations in the SETBP1 gene and occurs in people with no history of the disorder in their family. One copy of the altered gene in each cell is sufficient to cause the disorder.
Source: GHR