The Neurologist Said What?! #iih #chronicillness
Channel: Life with iih
Date: 2023-06-13

#chronicillness #idiopathicintracranialhypertension #rarediseases #pseudotumorcerebri 

I have a rare chronic illness called idiopathic intracranial hypertension. This can cause panicattacks, fatigue, tinnitus, nausea, chronic headaches and vision problem or visual loss. It is a neurological disease that and is considered a rare illness. It is treated with #diamox, but can also be treated with neurosurgical intervention. I vlog about my idiopathic intracranial hypertension from my perspective as a patient.

Today I spoke to my neurologist. I am still not in remission and that felt really bad. On the other hand that is probably the right call. I do not want to rush something. That means I still have to take Diamox until the next appointment. Also, a patient life was at stake at work today.