Family Advocacy Day 2023 Champions - Fernandes Family
Channel: Children's Hospital Association
Date: 02/04/2024

John Ryan was six months old when he was diagnosed with hypotonia and macrocephaly. Genetic testing would reveal a rare disorder called GATAD2B, one of only 310 such diagnoses in the world. The team at Children's Specialized Hospital in New Jersey leapt into action with a customized care plan focused on meeting his needs.

The Fernandes family joined the Children's Hospital Association at Family Advocacy Day 2023 to encourage lawmakers to continue funding child health care and Medicaid, so more kids like John Ryan can receive the dedicated support they need.