Prostate Cancer Lab Meeting #3 - “Tests and Treatments for Rick Stanton”
Channel: Cancer Patient Lab
Date: 2023-11-08

April 6, 2022

Discussion forum: https://community.cancerpatientlab.org/home

Full Transcript: https://docs.google.com/document/d/1zt-Z2GFGRYRxOyUYPaCwRTn1hwEXZxkHi_Am28I-j1k/edit?usp=sharing

Meeting Summary
Advanced prostate cancer patient Rick Stanton shared details on his testing and medical history, treatment options being considered, and the tests he would like to see to inform his future treatment decisions.

Medical history: Rick shared a table with his PSA measurements and treatment history. His PSA is currently under control, and he is looking to have his next treatment ready to go.

Treatment options: Rick listed the treatment options that have been recommended to him. Dr. John Laird suggested that trying chemotherapy combinations in the lab of Bob Nagourney at the Nagourney Cancer Institute would have a greater assurance of efficacy (80-90%) than clinical trials (15%). Rick Davis endorsed treatments with more evidence, and recommended that Rick revisit his initial diagnosis, as well as considering Pluvicto (PSMA-targeted radiation nanoparticles). 

Tests requested and analysis desired: Rick has requested IHC stains that will provide indications on his likely responsiveness to immunotherapies. He is offering his extensive medical data to anyone who would like to hack on it.

We continue work on “right to see” – finding ways for patients to be able to access data from “research use only” tests run on them.

Requests

Please let us know if you know anyone who might be interested in being a principal investigator, or any potential funding organizations, for an observational feasibility study on providing data from emerging (research use only) tests to patients to guide their prostate cancer treatment decisions (“right to see”).

If you would like access to Rick or Brian’s data, please contact them.

Please join our online discussion forum for 24/7 conversation. 

A discussion forum is at: community.cancerpatientlab.org

The information and opinions expressed on this website or platform, or during discussions and presentations (both verbal and written) are not intended as health care recommendations or medical advice by Cancer Patient Lab/Prostate Cancer Lab, its principals, presenters, participants, or representatives for any medical treatment, product, or course of action. You should always consult a doctor about your specific situation before pursuing any health care program, treatment, product or other course of action that might affect your health.