Baby Novah's Spinal Muscular Atrophy (SMA) type 1, a fatal, rare genetic disorder
Channel: BackaBuddy
Date: 2022-03-24

7-month-old, Baby Novah De Wet, from Aggeneys, Northern Cape, was diagnosed with Spinal Muscular Atrophy (SMA) type 1, a fatal, rare genetic disorder that affects important motor neurons in the body, responsible for movement and muscle development.

The condition which is the cause of the most infant fatalities can be treated with a miracle gene therapy drug, Zolgensma, available only in the US, which costs an astronomical R35 Million rand ($2.3 Million).

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