What is an epilepsy seizure diary? | epihunter
Channel: epihunter
Date: 2020-07-16

This week Hogne Ulla (epihunter) spoke with Neil Williamson, a UK-based paediatric nurse specialist with particular expertise in rare syndromes such as Dravet Syndrome. Neil has over the course of the years met many families affected by epilepsy. In this clip, he shares advice on how parents of newly diagnosed children with absence seizures can approach the conversations and the follow-up with their nurse and (paediatric) neurologist. Neil also gives 5 tips to better report changes in seizures and their manifestation in everyday life. 

Neil is also working with HOPE for Paediatric Epilepsy, a safe space for London (UK) area families to socialise, reduce isolation, build relationships, access support and guidance and most importantly for children to have some fun!

Want to get in touch with Neil Williamson? https://www.linkedin.com/in/neil-williamson-108b5514b/

More information about HOPE (London): https://www.facebook.com/HopePaediatricEpilepsyLondon/

More information about epihunter: https://www.epihunter.com